NIH VideoCast - Muscular Dystrophy Coordinating Committee (MDCC) Meeting - November 2016

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Muscular Dystrophy Coordinating Committee (MDCC) Meeting - November 2016

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Chapter		Description	Position
1		Welcome and introductions - Stephen I. Katz, MDCC Chair	0:00:05
2		Meeting Reports	0:17:31
3		Topic I: Ethics of Pediatric Clinical Trials	1:38:44
4		Topic II: Prospects for New Investigators in the Muscular Dystrophies	3:50:55
5		Closing remarks - Stephen I. Katz, MDCC Chair	5:58:20

Air date:	Tuesday, November 29, 2016, 8:30:00 AM Time displayed is Eastern Time, Washington DC Local
Views:	Total views: 181 (37 Live, 144 On-demand)
Category:	Advisory Boards and Councils
Runtime:	06:03:10
Closed captioning:	Check box to display CC outside of the video Note: You can drag the captioning window around and resize it
Description:	The Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2001 ("MD-CARE Act"; P.L. 107-84) authorized the establishment of the Muscular Dystrophy Coordinating Committee (MDCC) to coordinate activities across NIH and with other Federal health programs and activities relevant to the various forms of muscular dystrophy including Duchenne, myotonic, facioscapulohumeral muscular dystrophy and other forms of muscular dystrophy. The purpose of this meeting is to bring together committee members, representing government agencies, patient advocacy groups, other voluntary health organizations, and patients and their families to update one another on progress relevant to the Action Plan for the Muscular Dystrophies and to coordinate activities and discuss gaps and opportunities leading to better understanding of the muscular dystrophies, advances in treatments, and improvements in patients’ and their families’ lives.

Author:	NIH

CIT Live ID:	20133
Permanent link:	https://videocast.nih.gov/watch=20133

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