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Muscular Dystrophy Coordinating Committee (MDCC) Meeting - April 2014

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Chapter Description Position
1 Thumbnail image Welcome, Introductions, and Conflict of Interest Statement - Alan Guttmacher, MDCC Chair, NICHD/NIH, John Porter, MDCC Executive Secretary, NINDS/NIH 0:00:05
2 Thumbnail image Scientific Update on Congenital Muscular Dystrophy - Carsten Bonnemann, NINDS/NIH 0:12:30
3 Thumbnail image Congenital Muscular Dystrophy Report - Anne Rutkowski, Cure CMD 0:53:07
4 Thumbnail image Wellstone Centers Report - Glen Nuckolls, NIAMS/NIH 1:17:57
5 Thumbnail image Department of Defense Duchenne Muscular Dystrophy Program Report - Marielena McGuire, DMDRP 1:38:01
6 Thumbnail image Muscular Dystrophy Association Report - Valerie Cwik, MDA 1:59:27
7 Thumbnail image Facioscapulohumeral Muscular Dystrophy Report - June Kinoshita, FSH Society 2:24:26
8 Thumbnail image Development and Use of Patient-Reported Outcome Measures in Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy - Chad Heatwole, University of Rochester 2:50:22
9 Thumbnail image Working Lunch/Open Discussion 3:16:45
10 Thumbnail image NIH Report - John Porter, NINDS/NIH 3:32:15
11 Thumbnail image Centers for Disease Control and Prevention Report - Julie Bolen, CDC 4:13:21
12 Thumbnail image Development of FDA Guidance for Regulating Duchenne Muscular Dystrophy Products - Pat Furlong, Parent Project Muscular Dystrophy 4:36:08
13 Thumbnail image Duchenne Muscular Dystrophy Report - Brian Denger, Parent Project Muscular Dystrophy 5:02:24
14 Thumbnail image A Model of Effective Coordination of Expertise and Resources in Therapy Development - Justin Fallon, Brown University 5:19:05
15 Thumbnail image Improving Coordination through the MDCC 6:00:50
16 Thumbnail image Public Comment Period 6:29:40