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Muscular Dystrophy Coordinating Committee (MDCC) Meeting - April 2016

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Chapter Description Position
1 Thumbnail image Welcome and introductions - Stephen I. Katz, MDCC Chair 0:00:05
2 Thumbnail image Paving the way to therapies and a cure for dysferlinopathy - Plavi Mittal, Jain Foundation 0:17:26
3 Thumbnail image Pulmonary Outcome Measures for Duchenne - Abby Bronson, Parent Project Muscular Dystrophy 1:02:26
4 Thumbnail image 2016 MDA Clinical Conference - Valerie Cwik, Muscular Dystrophy Association 1:24:07
5 Thumbnail image Using ClinicalTrials.gov and Other Sources of Information about Clinical Trials - Deborah Zarin, NLM, NIH 1:40:37
6 Thumbnail image The Duchenne Regulatory Science Consortium - Jane Larkindale, Critical Path Institute 2:18:40
7 Thumbnail image Patient access to care, services and medical equipment - Annie Kennedy, Parent Project Muscular Dystrophy 3:00:50
8 Thumbnail image Access to Genetic Testing and Interdisciplinary Care - Kristin Stephenson, Muscular Dystrophy Association 3:45:48
9 Thumbnail image Applying for Disability Benefits: The SSA Perspective - Michael Goldstein and Alayna Ness, Office of Disability Policy, SSA 4:27:52
10 Thumbnail image CMS Resources and Services - Terri Postma, Centers for Medicare & Medicaid Services 5:24:15
11 Thumbnail image Data on the NIH supported muscular dystrophy research workforce - Glen Nuckolls, NINDS, NIH 6:24:15