NIH VideoCast - Muscular Dystrophy Coordinating Committee (MDCC) Meeting - August 2013

Skip Navigation

Muscular Dystrophy Coordinating Committee (MDCC) Meeting - August 2013

Loading... Loading video...

264 Views

Chapter		Description	Position
1		Welcome, Introductions, and Conflict of Interest Statement - Alan Guttmacher, MDCC Chair, NICHD/NIH, John Porter, MDCC Executive Secretary, NINDS/NIH	0:00:04
2		NIH: Activities Overview - John Porter, NINDS/NIH	0:13:31
3		NIH: Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers - Glen Nuckolls, NIAMS/NIH	0:39:19
4		NIH: Newborn Screening - Tiina Urv, NICHD/NIH	1:00:40
5		NIH: Cardiorespiratory Issues in Muscular Dystrophy - Jonathan Kaltman, NHLBI/NIH	1:15:00
6		Congressionally Directed Medical Research Program - Marielena McGuire, DMDRP/CDMRP/DoD	1:25:49
7		Public Member: Duchenne Muscular Dystrophy - Brian Denger, PPMD	1:53:13
8		Food and Drug Administration - Anne Pariser, OND/CDER/FDA	2:15:50
9		Public Member: Neuromuscular Disease - Valerie Cwik, MDA	2:31:47
10		National Institute on Disability and Rehabilitation Research - Theresa San Agustin, Dept. of Education	2:50:40
11		Public Member: Congenital Muscular Dystrophy - Anne Rutkowski, CureCMD	3:07:55
12		Center for Disease Control and Research - Mark Swanson, DHDD/NCBDDD/CDC	3:31:59
13		Public Member: Myotonic Dystrophy - Peter Wald	3:56:36
14		Living with Muscular Dystrophy: Life Transitions - Annie Kennedy, Muscular Dystrophy Association	4:11:26
15		Clinical Trials for Pediatric Neuromuscular Disorders: Expectations & Experiences - Holly Peay, Parent Project Muscular Dystrophy	4:40:52
16		Public Comment Period	5:16:00
17		Review of Planning for Update of Action Plan for the Muscular Dystrophies - John Porter, NINDS/NIH Heather Rieff, NINDS/NIH	5:30:02

Air date:	Monday, August 26, 2013, 8:30:00 AM Time displayed is Eastern Time, Washington DC Local
Views:	Total views: 264 (53 Live, 211 On-demand)
Category:	Advisory Boards and Councils
Runtime:	05:56:48
Closed captioning:	Check box to display CC outside of the video Note: You can drag the captioning window around and resize it
Description:	The Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2001 ("MD-CARE Act"; P.L. 107-84) authorized the establishment of the Muscular Dystrophy Coordinating Committee (MDCC) to coordinate activities across NIH and with other Federal health programs and activities relevant to the various forms of muscular dystrophy. The MDCC is a Congressionally mandated committee designed to coordinate research activities across the National Institutes of Health (NIH) and with other Federal health programs and activities relating to the various forms of muscular dystrophy, including Duchenne, myotonic, facioscapulohumeral muscular dystrophy and other forms of muscular dystrophy. The purpose of this meeting is to bring together the committee members to update one another on individual agency efforts and to discuss planning for revision of the Action Plan for the Muscular Dystrophies.

Author:	John Porter, Ph.D.

CIT Live ID:	12679
Permanent link:	https://videocast.nih.gov/watch=12679

Related Videos...