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Muscular Dystrophy Coordinating Committee (MDCC) Meeting - August 2013

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Chapter Description Position
1 Thumbnail image Welcome, Introductions, and Conflict of Interest Statement - Alan Guttmacher, MDCC Chair, NICHD/NIH, John Porter, MDCC Executive Secretary, NINDS/NIH 0:00:04
2 Thumbnail image NIH: Activities Overview - John Porter, NINDS/NIH 0:13:31
3 Thumbnail image NIH: Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers - Glen Nuckolls, NIAMS/NIH 0:39:19
4 Thumbnail image NIH: Newborn Screening - Tiina Urv, NICHD/NIH 1:00:40
5 Thumbnail image NIH: Cardiorespiratory Issues in Muscular Dystrophy - Jonathan Kaltman, NHLBI/NIH 1:15:00
6 Thumbnail image Congressionally Directed Medical Research Program - Marielena McGuire, DMDRP/CDMRP/DoD 1:25:49
7 Thumbnail image Public Member: Duchenne Muscular Dystrophy - Brian Denger, PPMD 1:53:13
8 Thumbnail image Food and Drug Administration - Anne Pariser, OND/CDER/FDA 2:15:50
9 Thumbnail image Public Member: Neuromuscular Disease - Valerie Cwik, MDA 2:31:47
10 Thumbnail image National Institute on Disability and Rehabilitation Research - Theresa San Agustin, Dept. of Education 2:50:40
11 Thumbnail image Public Member: Congenital Muscular Dystrophy - Anne Rutkowski, CureCMD 3:07:55
12 Thumbnail image Center for Disease Control and Research - Mark Swanson, DHDD/NCBDDD/CDC 3:31:59
13 Thumbnail image Public Member: Myotonic Dystrophy - Peter Wald 3:56:36
14 Thumbnail image Living with Muscular Dystrophy: Life Transitions - Annie Kennedy, Muscular Dystrophy Association 4:11:26
15 Thumbnail image Clinical Trials for Pediatric Neuromuscular Disorders: Expectations & Experiences - Holly Peay, Parent Project Muscular Dystrophy 4:40:52
16 Thumbnail image Public Comment Period 5:16:00
17 Thumbnail image Review of Planning for Update of Action Plan for the Muscular Dystrophies - John Porter, NINDS/NIH Heather Rieff, NINDS/NIH 5:30:02