NIH VideoCast - When People are Data: How Medical History Matters for Our Digital Age

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When People are Data: How Medical History Matters for Our Digital Age

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Air date:	Tuesday, June 9, 2020, 2:00:00 PM Time displayed is Eastern Time, Washington DC Local
Views:	Total views: 883 (351 Live, 532 On-demand)
Category:	History
Runtime:	01:00:13
Closed captioning:	Check box to display CC outside of the video Note: You can drag the captioning window around and resize it
Description:	NLM History of Medicine This talk focuses on the history of a particular collection of data, extracted and digitized from patient records made in the course of a longitudinal epidemiological study involving Indigenous members of the Gila River Indian Community Reservation in the American Southwest. The creation, circulation, and eventual restriction of the Pima Indian Diabetes Dataset (PIDD) demonstrates the value of medical and Indigenous histories to the study of Big Data. The history of the PIDD reveals how data becomes alienated from persons even as it reproduces complex social realities of the circumstances of its origin.

NLM Title:	When people are data : how medical history matters for our digital age / Joanna Radin.
Author:	Radin, Joanna. National Library of Medicine (U.S.). History of Medicine Division,
Publisher:
Abstract:	(CIT): NLM History of Medicine This talk focuses on the history of a particular collection of data, extracted and digitized from patient records made in the course of a longitudinal epidemiological study involving Indigenous members of the Gila River Indian Community Reservation in the American Southwest. The creation, circulation, and eventual restriction of the Pima Indian Diabetes Dataset (PIDD) demonstrates the value of medical and Indigenous histories to the study of Big Data. The history of the PIDD reveals how data becomes alienated from persons even as it reproduces complex social realities of the circumstances of its origin.
Subjects:	Big Data Datasets as Topic--history Diabetes Mellitus, Type 2--epidemiology Health Records, Personal--history History, 20th Century History, 21st Century Indians, North American--ethnology Longitudinal Studies United States--epidemiology
Publication Types:	Lecture Webcast

NLM Classification:	WK 11 AA1
NLM ID:	101769628
CIT Live ID:	35473
Permanent link:	https://videocast.nih.gov/watch=35473

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