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When People are Data: How Medical History Matters for Our Digital Age

Tuesday, June 9, 2020, 2:00:00 PM, 1 hour.

Description: NLM History of Medicine

This talk focuses on the history of a particular collection of data, extracted and digitized from patient records made in the course of a longitudinal epidemiological study involving Indigenous members of the Gila River Indian Community Reservation in the American Southwest. The creation, circulation, and eventual restriction of the Pima Indian Diabetes Dataset (PIDD) demonstrates the value of medical and Indigenous histories to the study of Big Data. The history of the PIDD reveals how data becomes alienated from persons even as it reproduces complex social realities of the circumstances of its origin.
Author: Joanna Radin, PhD- Associate Professor, Program in History of Science and Medicine, Yale University
Runtime: 1 hour
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Event ID: 35473