NIH VideoCast - Rare Disease Day at NIH 2019

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Rare Disease Day at NIH 2019

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Air date:	Thursday, February 28, 2019, 8:00:00 AM Time displayed is Eastern Time, Washington DC Local
Views:	Total views: 1,761 (1,208 Live, 553 On-demand)
Category:	Conferences
Runtime:	05:42:40
Closed captioning:	Check box to display CC outside of the video Note: You can drag the captioning window around and resize it
Description:	Rare diseases affect an estimated 30 million people in the United States. On February 28, 2019, NIH will host an event to raise awareness about these disorders, the people they affect, and current research collaborations. Sponsored by the National Center for Advancing Translational Sciences (NCATS) and the NIH Clinical Center, the event will feature interactive panel discussions on collective research models for rare diseases, patient registries, rare cancer research initiatives, and no disease/patient left behind. New this year will be a presentation of the first ever Zebbie award for the NCATS Rare Diseases Are Not Rare! Challenge. Participants can share their thoughts, photos, and experiences during the day via social media using the hashtag #RDDNIH. For more information go to https://ncats.nih.gov/rdd

NLM Title:	Rare Disease Day at NIH 2019 : Natcher Conference Center / ORDR, NCATS & CC, NIH.
Author:	Rare Disease Day (Conference) National Institutes of Health (U.S.). Office of Rare Diseases Research, National Center for Advancing Translational Sciences (U.S.), National Institutes of Health (U.S.). Clinical Center,
Publisher:
Abstract:	(CIT): Rare diseases affect an estimated 30 million people in the United States. On February 28, 2019, NIH will host an event to raise awareness about these disorders, the people they affect, and current research collaborations. Sponsored by the National Center for Advancing Translational Sciences (NCATS) and the NIH Clinical Center, the event will feature interactive panel discussions on collective research models for rare diseases, patient registries, rare cancer research initiatives, and no disease/patient left behind. New this year will be a presentation of the first ever Zebbie award for the NCATS Rare Diseases Are Not Rare! Challenge.
Subjects:	Rare Diseases United States
Publication Types:	Congress Webcast

NLM Classification:	QZ 140
NLM ID:	101744874
CIT Live ID:	27718
Permanent link:	https://videocast.nih.gov/watch=27718

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