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Ethics Rounds: How Should Clinicians Handle Cases of Misattributed Parentage?
Investigators frequently uncover information about subjects unrelated to their studies, raising the challenge of when investigators should inform subjects of incidental findings. This challenge is perhaps most difficult when research findings indicate that a child is not biologically related to his or her parents. Please join us to discuss when investigators should share these findings with families.
The program, which involves presentation and discussion of an actual case that occurred at the NIH, should be of interest to all individuals involved in research, as well as those interested in important issues in bioethics.
Presenter: Lynne Wolfe, MS, CRNP, BC
Undiagnosed Diseases Program, NHGRI
Discussant: Sally Haslanger PhD, Professor of Philosophy and Director, Women's and Gender Studies Program, MIT.
Ethics rounds. How should clinicians handle cases of misattributed parentage? / Sally Haslanger, Lynne A. Wolfe.
Author:
Haslanger, Sally Anne. National Institutes of Health (U.S.)
Publisher:
Abstract:
(CIT): Ethics Rounds: How Should Clinicians Handle Cases of Misattributed Parentage? Investigators frequently uncover information about subjects unrelated to their studies, raising the challenge of when investigators should inform subjects of incidental findings.This challenge is perhaps most difficult when research findings indicate that a child is not biologically related to his or her parents. Please join us to discuss when investigators should share these findings with families.The program, which involves presentation and discussion of an actual case that occurred at the NIH, should be of interest to all individuals involved in research, as well as those interested in important issues in bioethics. Presenter: Lynne Wolfe, MS, CRNP, BC Undiagnosed Diseases Program, NHGRI Discussant: Sally Haslanger PhD, Professor of Philosophy and Director, Women's and Gender Studies Program, MIT.
Subjects:
Disclosure--ethics Genetic Research Incidental Findings Paternity
