Patient Advocacy & NIH: Marriage by Choice or Necessity (HHS-Only)

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Air date:	Tuesday, May 25, 2010, 8:30:00 AM Time displayed is Eastern Time, Washington DC Local
Views:	Total views: 91 * This only includes stats from October 2011 and forward.
Category:	STEP (HHS Only)
Runtime:	03:22:47
Closed captioning:	Check box to display CC outside of the video Note: You can drag the captioning window around and resize it
Description:	STEP: Staff Training in Extramural Programs The role of patient advocacy groups in promoting public health issues has been controversial. Growing from social movement advocacy for faster development of AIDS treatments to current Public Private Partnerships, the relationship between the NIH and patient advocates has come a long way. Should the practice of involving advocates in NIH activities become more commonplace? How and when should they serve: as consultants for clinical research, in peer review, or as programmatic advisors to the Institutes and Centers? This STEP forum will discuss ways to facilitate working with advocacy groups and explore the benefits to NIH staff, scientists, advocates, and, most importantly, patients. For more information, visit http://odoerdb2-1.od.nih.gov/oer/training/step/step_training_20100209.htm

NLM Title:	Patient advocacy & NIH : marriage by choice or necessity / Chuck Selden; STEP.
Author:	Selden, Chuck. National Institutes of Health (U.S.). Staff Training-Extramural Programs Committee.
Publisher:
Abstract:	(CIT): STEP: Staff Training in Extramural Programs The role of patient advocacy groups in promoting public health issues has been controversial. Growing from social movement advocacy for faster development of AIDS treatments to current Public Private Partnerships, the relationship between the NIH and patient advocates has come a long way. Should the practice of involving advocates in NIH activities become more commonplace? How and when should they serve: as consultants for clinical research, in peer review, or as programmatic advisors to the Institutes and Centers? This STEP forum will discuss ways to facilitate working with advocacy groups and explore the benefits to NIH staff, scientists, advocates, and, most importantly, patients.
Subjects:	Lobbying Patient Advocacy Self-Help Groups
Publication Types:	Lecture Webcast
NLM Classification:	W 85.4
NLM ID:	101535263
CIT Live ID:	8593
Permanent link:	https://videocast.nih.gov/watch=8593

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