Advancing Rare Diseases Research Through Networks and Collaboration

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Air date:	Thursday, July 16, 2009, 8:00:00 AM Time displayed is Eastern Time, Washington DC Local
Views:	Total views: 116 * This only includes stats from October 2011 and forward.
Category:	Conferences
Runtime:	06:43:07
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Description:	Purpose: 1. Provide unique advances in RDCRN 2. Highlight successful collaborations to improve rare diseases research 3. Highlight the involvement and essential role of patient advocacy groups to facilitate Research and accrual of patients 4. Discuss procedures to apply standards across research consortia and research network. For more information ,visit: http://rarediseases.info.nih.gov/RD_Research_Network_Registration/AddContact.aspx

NLM Title:	Advancing rare diseases research through networks and collaboration / Office of Rare Diseases Research and National Center for Research Resources, National Institutes of Health.
Author:	National Institutes of Health (U.S.). Office of Rare Diseases Research.
Publisher:
Abstract:	(CIT): Purpose: 1. Provide unique advances in RDCRN 2. Highlight successful collaborations to improve rare diseases research 3. Highlight the involvement and essential role of patient advocacy groups to facilitate Research and accrual of patients 4. Discuss procedures to apply standards across research consortia and research network.
Subjects:	Interprofessional Relations Rare Diseases
Publication Types:	Lecture Webcast
NLM Classification:	QZ 140
NLM ID:	101512276
CIT Live ID:	7739
Permanent link:	https://videocast.nih.gov/watch=7739

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