Skip Navigation

NIH VideoCasting

CIT can broadcast your seminar, conference or meeting live to a world-wide audience over the Internet as a real-time streaming video. The event can be recorded and made available for viewers to watch at their convenience as an on-demand video or a downloadable file. CIT can also broadcast NIH-only or HHS-only content.

Advancing Rare Diseases Research Through Networks and Collaboration

Loading video...

Air date: Thursday, July 16, 2009, 8:00:00 AM
Time displayed is Eastern Time, Washington DC Local
Views: Total views: 108 * This only includes stats from October 2011 and forward.
Category: Conferences
Runtime: 06:43:07
Description: Purpose:
1. Provide unique advances in RDCRN
2. Highlight successful collaborations to improve rare diseases research
3. Highlight the involvement and essential role of patient advocacy groups to facilitate Research and accrual of patients
4. Discuss procedures to apply standards across research consortia and research network.

For more information ,visit: http://rarediseases.info.nih.gov/RD_Research_Network_Registration/AddContact.aspx
NLM Title: Advancing rare diseases research through networks and collaboration / Office of Rare Diseases Research and National Center for Research Resources, National Institutes of Health.
Author: National Institutes of Health (U.S.). Office of Rare Diseases Research.
Publisher:
Abstract: (CIT): Purpose: 1. Provide unique advances in RDCRN 2. Highlight successful collaborations to improve rare diseases research 3. Highlight the involvement and essential role of patient advocacy groups to facilitate Research and accrual of patients 4. Discuss procedures to apply standards across research consortia and research network.
Subjects: Interprofessional Relations
Rare Diseases
Publication Types: Lecture
Webcast
Download: To download this event, select one of the available bitrates:
[384k]    How to download a Videocast
NLM Classification: QZ 140
NLM ID: 101512276
CIT Live ID: 7739
Permanent link: https://videocast.nih.gov/watch=7739

Related Videos...

Click Here to Play Video.
07:40:22
NCI Board of Scientific Advisors - March 2004 (Day 1)
[NCI Board of Scientific Advisors]
3/15/2004
Click Here to Play Video.
08:25:43
NCI Board of Scientific Advisors - June 2005 (Day 1)
[NCI Board of Scientific Advisors]
6/27/2005
Click Here to Play Video.
07:32:10
NCI Board of Scientific Advisors - March 2007 (Day 1)
[NCI Board of Scientific Advisors]
3/5/2007
Click Here to Play Video.
08:54:32
National Cancer Advisory Board Meeting - September 2008
[National Cancer Advisory Board]
9/8/2008
Click Here to Play Video.
07:09:14
NCI Executive Committee Scientific Retreat: "Making Personalized Cancer Medicine a Reality - What Will It Take?" - Day 2 (NIH-Only)
[NIH Only]
2/17/2010
Click Here to Play Video.
05:15:39
The NIH Roadmap: Inviting Drug Abuse and Addiction Researchers to Contribute to the Clinical Research Enterprise
[Special]
10/24/2005
Click Here to Play Video.
05:12:43
The National Cancer Advisory Board Meeting - June 2010 (Day 1)
[National Cancer Advisory Board]
6/22/2010
Click Here to Play Video.
06:22:58
20th Anniversary of the Office of research on women's Health
[Women's Health]
9/27/2010
Click Here to Play Video.
05:42:40
Rare Disease Day at NIH 2019
[Conferences]
2/28/2019
Click Here to Play Video.
05:27:30
NIH Council of Councils - May 2019
[Council of Councils]
5/17/2019