NIH VideoCast - Gene-Targeted Therapies: Early Diagnosis and Equitable Delivery (Day 2)

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Gene-Targeted Therapies: Early Diagnosis and Equitable Delivery (Day 2)

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Air date:	Thursday, June 10, 2021, 12:00:00 PM Time displayed is Eastern Time, Washington DC Local
Views:	Total views: 1,110 (791 Live, 319 On-demand)
Category:	Conferences
Runtime:	04:15:01
Closed captioning:	Check box to display CC outside of the video Note: You can drag the captioning window around and resize it
Description:	NIH invites stakeholders throughout the scientific research, advocacy, clinical practice, industry, and lay communities, including the general public, to attend the 3-day meeting and submit comments or questions relating to the effective, efficient and equitable distribution of gene-targeted therapies for individuals with rare diseases. The goal of Day 2 is to discuss: •What infrastructure is required to disseminate gene-targeted therapies to individuals with rare diseases in need of treatment? For more information on the meeting and to view the agenda for all three days, visit: https://events-support.com/events/Gene-Targeted_Therapies_June_2021

NLM Title:	Gene-targeted therapies : early diagnosis and equitable delivery / National Center for Translational Sciences, NIH.
Author:	Gene-Targeted Therapies: Early Diagnosis and Equitable Delivery (Conference) National Center for Advancing Translational Sciences (U.S.), National Institutes of Health (U.S.),
Publisher:
Abstract:	(CIT): NIH invites stakeholders throughout the scientific research, advocacy, clinical practice, industry, and lay communities, including the general public, to attend the 3-day meeting and submit comments or questions relating to the effective, efficient and equitable distribution of gene-targeted therapies for individuals with rare diseases. The goal of Day 1 is to discuss: Who are the individuals that could benefit from gene-targeted therapies - now and in the future? What novel approaches are needed to enable development of gene-targeted therapies for all genetic rare diseases - now and in the future? When is the optimal time to identify individuals who could benefit from gene-targeted therapies (e.g., newborn screening)?.
Subjects:	Early Diagnosis Health Services Accessibility Rare Diseases--genetics Targeted Gene Repair Translational Science, Biomedical.
Publication Types:	Congress Webcast

NLM Classification:	QU 560
NLM ID:	9918226874306676
CIT Live ID:	41969
Permanent link:	https://videocast.nih.gov/watch=41969

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