NIH VideoCast - Given a Voice: An Update on the NIH-Lacks Family Partnership

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Given a Voice: An Update on the NIH-Lacks Family Partnership

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Air date:	Friday, July 21, 2017, 1:30:00 PM Time displayed is Eastern Time, Washington DC Local
Views:	Total views: 1,156 (455 Live, 701 On-demand)
Category:	Special
Runtime:	00:56:48
Closed captioning:	Check box to display CC outside of the video Note: You can drag the captioning window around and resize it
Description:	Information on the partnership between the NIH and the family of Henrietta Lacks. Speakers: Francis S. Collins, M.D., Ph.D., NIH Director David Lacks, Jr., grandson of Henrietta Lacks Jeri Lacks-Whye, granddaughter of Henrietta Lacks Dina Paltoo, Ph.D., M.P.H., Office of Science Policy, NIH Dr. Paltoo will highlight the origins of HeLa cells, which derived from the tumor of the late Henrietta Lacks and have been used extensively in biomedical research for the past 60 years. Dr. Paltoo will discuss the formation of the NIH-Lacks Family Partnership when the HeLa genome became public, and the integral involvement of Lacks family members in deciding how the whole genome data from these cells can be used. Dr. Collins will moderate a conversation with Jeri Lacks-Whye and David Lacks focused on the partnership.

NLM Title:	Given a voice : an update on the NIH-Lacks family partnership / Francis S. Collins, David Lacks, Jr., Jeri Lacks-Whye, Dina Paltoo.
Author:	Collins, Francis S. Lacks, David. Lacks-Whye, Jeri. Paltoo, Dina. National Institutes of Health (U.S.),
Publisher:
Abstract:	(CIT): Information on the partnership between the NIH and the family of Henrietta Lacks. Speakers: Francis S. Collins, M.D., Ph.D., NIH Director, David Lacks, Jr., grandson of Henrietta Lacks, Jeri Lacks-Whye, granddaughter of Henrietta Lacks, Dina Paltoo, Ph.D., M.P.H., Office of Science Policy, NIH. Dr. Paltoo will highlight the origins of HeLa cells, which derived from the tumor of the late Henrietta Lacks and have been used extensively in biomedical research for the past 60 years. Dr. Paltoo will discuss the formation of the NIH-Lacks family partnership when the HeLa genome became public, and the integral involvement of Lacks family members in deciding how the whole genome data from these cells can be used. Dr. Collins will moderate a conversation with Jeri Lacks-Whye and David Lacks focused on the partnership.
Subjects:	Government Agencies HeLa Cells Informed Consent--history Public-Private Sector Partnerships United States
Publication Types:	Lecture Webcast
NLM Classification:	QU 300
NLM ID:	101710195
CIT Live ID:	24809
Permanent link:	https://videocast.nih.gov/watch=24809