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Democratizing discovery science with n=Me

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Air date: Wednesday, October 5, 2016, 3:00:00 PM
Time displayed is Eastern Time, Washington DC Local
Views: Total views: 306, (120 Live, 186 On-demand)
Category: WALS - Wednesday Afternoon Lectures
Runtime: 00:56:26
Description: NIH Wednesday Afternoon Lecture

The NIH Precision Medicine Initiative intends to build bridges from genome medicine to data science by reaching over 1 million Americans. Yet it is far from certain that under-represented populations will actively engage PMI and other NIH discovery science opportunities. We have known for some time that a lack of inclusion of under-represented populations in biomedical research contributes to inequities in health. Thus, any persistent lack of participation in regards to the bold promises of PMI could exacerbate health disparities as we enter the new age of genome science and digital technology.

Dr. Ofili will present new data on how and why traditionally under-represented patients and minority research participants may or may not choose to actively participate in scientific discovery. Her technology innovation is at the intersection of patient engagement, health systems, and the community, three stakeholder pillars that are relevant to precision medicine and discovery science. Moreover, her research underscores the opportunity to effectively engage an increasingly diverse and mobile America in a new biomedical research landscape beyond the walls of the academic health system, to the communities where participants live, work, worship, and play.

For more information go to https://oir.nih.gov/wals/2016-2017/democratizing-discovery-science-nme
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NLM Title: Democratizing discovery science with n=Me / Elizabeth Ofili.
Author: Ofili, Elizabeth.
National Institutes of Health (U.S.),
Publisher:
Abstract: (CIT): NIH Wednesday Afternoon Lecture The NIH Precision Medicine Initiative intends to build bridges from genome medicine to data science by reaching over 1 million Americans. Yet it is far from certain that under-represented populations will actively engage PMI and other NIH discovery science opportunities. We have known for some time that a lack of inclusion of under-represented populations in biomedical research contributes to inequities in health. Thus, any persistent lack of participation in regards to the bold promises of PMI could exacerbate health disparities as we enter the new age of genome science and digital technology. Dr. Ofili will present new data on how and why traditionally under-represented patients and minority research participants may or may not choose to actively participate in scientific discovery. Her technology innovation is at the intersection of patient engagement, health systems, and the community, three stakeholder pillars that are relevant to precision medicine and discovery science. Moreover, her research underscores the opportunity to effectively engage an increasingly diverse and mobile America in a new biomedical research landscape beyond the walls of the academic health system, to the communities where participants live, work, worship, and play.
Subjects: Chronic Disease--prevention & control
Chronic Disease--therapy
Community-Based Participatory Research
Mobile Applications
Self Care
United States
Publication Types: Lecture
Webcast
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Caption Text: Download Caption File
NLM Classification: WT 500
NLM ID: 101696066
CIT Live ID: 20024
Permanent link: https://videocast.nih.gov/watch=20024