MY NAME IS COUNCILWOMAN DIAZ AND
WE'LL DO INTRODUCTIONS OF OUR
TAC MEMBERS WE'LL START HERE.
IS THIS THE OFFICIAL ROLL CALL?
OKAY.
BECAUSE I'M USED TO DOING THIS
ON ZOOM.
THIS IS THE FIRST TIME WE'RE
DOING THIS AND USUALLY THERE'S A
ROLL CALL.
OKAY.
WE'RE JUST GOING TO DO A ROUND
OF INTRODUCTIONS.
OKAY.
>>DEBBY DANFORTH FOR THE TRIBAL
ADVISORY COMMITTEE MEMBER FROM
WISCONSIN AND REPRESENT IING TH
NATION.
>>I'M DONNA GALBREATH FROM
ALASKA AND WORK IN ANCHORAGE AND
REPRESENTING MY TRIBE THE
MENTASTA STRIKE.
>>I'M BOB EISINGER FOR
COORDINATION, PLANNING AND
STRATEGIC INITIATIVES ONE OF THE
OFFICES IN OUR DIVISION.
>>GOOD MORNING I'M ALISA
MOUSSEAU.
>>I'M TYLER LA FLAUNT IN
WASHINGTON STATE.
I'M AN AREA DELEGATE.
>>GOOD MORNING.
[NON-ENGLISH]
>>I'M BRITTANIOCK A REPRESENT
FROM THE SAINT REGIS MOHAWK
TRIBE.
>>DO WE HAVE MEMBERS ON ZOOM?
OKAY.
>>WELCOME TO THE NIH MEETING.
I'LL TURN IT OVER TO YOU ALL FOR
THE WELCOME FROM THE NIH.
>>WELCOME.
WE JUST WANT TO ACKNOWLEDGE OUR
NIH COLLEAGUES WHO ARE HERE AND
THOSE HERE FROM ACROSS THE
COUNTRY.
[OFF-MIC]
THANK YOU FOR BEING HERE AND
WE'LL TALK ABOUT THE MEETING
PROCEDURES.
>>SO WE'RE GOING TO BE TAG
TEAMING HERE A LITTLE BIT.
SO THIS IS THE FIRST TIME WE'VE
BEEN MEETING IN PERSON FOR A
COUPLE OF YEARS SINCE THE
PANDEMIC SO IT'S GREAT.
WE'RE GOING TO TAKE ADVANTAGE OF
THIS TIME.
WE HAD A CAUCASIAN EARLIER RIGHT
BEFORE THIS MEETING WE HAD A
GOOD CONVERSATION ABOUT SOME OF
THE WORK THAT WE'D LIKE TO
CONTINUE ON AND IN FACT IT WENT
FAST SO IF YOU WOULDN'T HAVE TO
WALKED IN ON US WE WOULDN'T KNOW
OUR TIME WAS UP.
WE'RE LOOKING FORWARD TO
CONTINUING OUR CONVERSATION.
THERE'S A LOT OF GOOD WORK WE'D
LIKE TO CONTINUE.
ALSO A LOT OF OUR CONVERSATIONS
THAT WE'VE HAD HAVE BEEN ABOUT
OUR TECHNICAL ADVISERS AND US
LEARNING ABOUT THESE INITIATIVES
AND HAVING THESE CONVERSATIONS
ABOUT THESE PROJECTS THAT THE
INITIATIVES, THE RESEARCH AND
HOW WE CAN LEARN A LITTLE BIT
MORE AND REALLY SEE WHAT'S
HAPPENING HERE AT NIH AND
CONNECT THEM BACK TO OUR
COMMUNITIES AND NATIONS AND
CONNECT THEM BACK TO OUR
SCHOLARS AND OUR RESEARCHERS AND
HOW WE CAN MAKE THAT WORK.
IT'S REALLY IMPORTANT FOR US TO
BUILD THOSE RELATIONSHIPS AND
REALLY GAIN AN UNDERSTANDING AND
ASK QUESTIONS AND REALLY HELP
BUILD THOSE BRIDGES BECAUSE
THERE'S A LOT OF WORK TO BE DONE
AND IT'S NOTHING ELSE LIKE BEING
HERE TO REALLY UNDERSTAND THE
PROCESS AND WE'RE REALLY LOOKING
FORWARD TO THAT.
WE'RE LOOKING FORWARD TO A
PRODUCTIVE TWO DAYS.
>>I WANTED TO MAKE SURE THAT I
PROPERLY INTRODUCE COUNCILWOMAN
FRIAS AND IS A DELEGATE FROM THE
TUCSON AREA AND FIRST WOMAN TO
BE ELECTED AS THE PASCUA YAQUI
TRIBE AND SERVED AS A COUNCIL
MEMBER FOR NATIVE NATIONS
INSTITUTE AND BUSH FOUNDATION
MANAGER AND WANTED TO
ACKNOWLEDGE HER LEADERSHIP TODAY
AND WANTED TO RECOGNIZE BOB
EISINGER WHO WILL BE SPEAKING IN
A MOMENT.
DR. EISINGER IS FROM
COORDINATION, PLANNING AND
STRATEGY INITIATIVES.
HE'S THE DIRECTOR.
YOU'LL HEAR THE TERM DPCPSI IN
THE OFFICE OF THE DIRECTOR AT
THE NATIONAL INSTITUTES OF
HEALTH.
HE'S SERVED IN A NUMBER OF
LEADERSHIP ROLES AT THE NIH
INCLUDING SENIOR SCIENCE ADVISER
TO THE DCPSI DIRECTOR AND
ASSOCIATE DIRECTOR FOR AIDS
RESEARCH AND THE ACTING DIRECTOR
OF OFFICE OF AIDS RESEARCH AT
THE NIH.
FOR 24 YEARS PRIOR HE SERVED AS
THE DIRECTOR OF SCIENTIFIC
OPERATIONS IN THE OFFICE OF AIDS
RESEARCH.
HIS CAREER AT THE NIH GAN AS A
PROGRAM VIROLOGIST IN THE NI AD
DIVISION AND COORDINATED THE 45
VIROLOGY LABORATORIES SUPPORTING
THE CLINICAL TRIALS NETWORKS.
WELCOME.
>>THANK YOU AND WELCOME.
WE'RE GLAD YOU'RE ABLE TO JOIN
US AT THE 2023 ANNUAL NIH TRIBAL
ADVISORY COMMITTEE MEETING.
IT'S MY PRIVILEGE AND PLEASURE
TO BE PARTICIPATE IN THIS
IMPORTANT MEETING.
AS YOU KNOW THIS IS THE FIRST
IN-PERSON MEETING OF THIS GROUP
IN SEVERAL YEARS.
WE'RE GLAD YOU WERE ABLE TO JOIN
US TODAY AND ARRANGED FOR A
NUMBER OF ACTIVITIES WHILE HERE
ON CAMPUS.
THE AGENDA IS QUITE FULL FOR ALL
OF TODAY AND MOST OF TOMORROW AS
WELL.
I'D LIKE TO THANK DOUG WALTERS
AND THE TEAM FOR COORDINATING
THE ANNUAL TAC MEETING AND ALSO
ACKNOWLEDGE AND THANK KENDRA
BOSE FOR HER EFFORTS AND WOULD
LIKE TO THANK OUR SPECIAL
GUESTS.
WE INVITED SEVERAL AMERICAN
INDIAN AND ALASKAN INDIAN
INVESTIGATORS TO SHARE RESEARCH
THEY'RE DOING SUPPORTED BY THE
NIH AND TO DISCUSS SOME OF THEIR
RESEARCH TRAINING PROGRAMS AND
BEST PRACTICES AND SO FORTH.
THESE INVESTIGATORS TRULY WORK
THE FRONT LINE IN A.I. AND A.N.
COMMUNITIES AND FORTUNATE TO
HAVE THEM JOIN US TODAY.
WE HAVE ALSO INVITED A NUMBER OF
NIH PROGRAM DIRECTORS WHO WILL
BE PRESENTING ON THEIR PROGRAMS
AS WELL AND ALSO BE AVAILABLE
FOR YOU TO MEET WITH THEM AND
DISCUSS SOME OF THEIR
ACTIVITIES, SPECIAL INITIATIVES
AND SO FORTH.
WE HAVE TWO PANELS.
THE FIRST PANEL WILL BE
FOCUSSING ON INNOVATIONS RELATED
TO NIH RESEARCH INITIATIVES AND
THE SECOND PANEL WILL FOCUS ON
INNOVATION AND RESEARCH TRAINING
AND WORKFORCE DEVELOPMENT.
WE'RE VERY PLEASED TO HAVE
EVERYONE JOIN US TODAY.
WE LOOK FORWARD TO LEARNING MORE
ABOUT THESE STUDIES THAT HAVE
BEEN ONGOING AND CAN HELP
CONTRIBUTE TO IDENTIFYING THE
WAY FORWARD AND HOW NIH CAN
INDEED SUPPORT A.I., A.N. IN
TRIBAL HEALTH RESEARCH AS WELL
AS TRAINING AND IMPORTANTLY
WORKFORCE DEVELOPMENT.
YOU'LL HEAR MORE ABOUT THIS
STARTING THIS AFTERNOON.
TOMORROW AS YOU KNOW ACCORDING
TO THE AGENDA YOU'LL BE VISITING
THE NIH CLINICAL CENTER IN THE
MORNING AND YOU'LL HAVE AN
OPPORTUNITY TO MEET SEVERAL OF
THE NIH INTRAMURAL RESEARCHERS
WHO ARE CONDUCTING STUDIES HERE
ON THE NIH CAMPUS.
TOMORROW AFTERNOON WE'LL COME
BACK HERE AND MEET WITH
DR. TABAK WHO IS THE ACTING NIH
DIRECTOR AND SO WE'RE VERY
FORTUNATE TO HAVE HIM JOIN US
AND THROUGHOUT TODAY AND
TOMORROW WE ANTICIPATE THAT
DR. TARA SCHWETZ THE ACTING
PRINCIPAL NIH DEPUTY DIRECTOR
WILL BE HERE AS WELL AS WILL
DR. NINA SHORE THE NIH DEPUTY
DIRECTOR FOR INTRAMURAL
RESEARCH.
I KNOW THERE'S A LOT TO DISCUSS
IN THE NEXT TWO DAYS.
THANK YOU VERY MUCH FOR COMING
TO THE NIH AND WE LOOK FORWARD
TO THE DISCUSSIONS LATER TODAY.
I'LL TURN THE MICROPHONE BACK TO
DR. WALTERS.
>>THANK YOU, DR. EISINGER.
GOOD MORNING, EVERYONE.
WELCOME.
AS NOTED THIS IS OUR FIRST IN
PERSON MEETING SO THERE MAY BE A
FEW HICCUPS.
BEAR WITH US BUT WE'RE EXCITED
TO FINALLY MEET IN PERSON AND
I'M HAPPY TO BE HERE WITH YOU.
I WANT TO THANK THE NIH STAFF
FOR THEIR CONTRIBUTIONS.
WE HAVE ALL KINDS OF STRICT
RULES BUT DIDN'T WANT ANYONE TO
BE HUNGRY OR ANGRY SO WE MADE
SURE YOU'RE FED.
WE'RE NOT ALLOWED TO PURCHASE
WITH FEDERAL FUNDS ANY FOOD SO
THEY'RE VOLUNTEER DONATIONS SO
THANK YOU FOR PEOPLE CHIPPING
IN.
IN A MINUTE I'M GOING TO TURN TO
DISCUSSING SOME OF THE
HIGHLIGHTS.
GIVE ME A SECOND TO GET THAT
PULLED UP.
[SPEAKING NON-ENGLISH]
>>GOOD MORNING, EVERYBODY.
I'M KARINA WALTERS I'M A CITIZEN
OF THE CHOCTAW NATION OF
OKLAHOMA.
I'M THREE MONTHS IN IN THIS NEW
ROLE AS THE DIRECTOR OF THE
TRIBAL HUGE RESEARCH OFFICE AND
WANTED TO PAY MY RESPECTS TO THE
PISCATAWAY PEOPLE AND I WANTED
TO ACKNOWLEDGE AND I WISH
MR. SWANN WAS STILL HERE BUT
THERE'S A CREEK THAT RUNS
THROUGH THE CAMPUS.
SO IF YOU'RE WALKING AROUND
CAMPUS YOU MAY FIND THAT CREEK.
ON THE CREEK THERE USED TO BE --
THIS WAS CAMPING GROUNDS FOR
HUNTING SO THERE'S A LOT OF
HUNTING THAT WAS DONE IN THIS
AREA AND MULTIPLE TRIBES STORE
THOUSANDS OF YEARS USED THIS
AREA AROUND THE CREEK TO CAMP.
JUST WANTED TO PAY MY RESPECT TO
TRIBES PAST BUT ALSO CURRENT
INDIGENOUS PEOPLE WHO LIVE AND
RESIDE IN OUR COMMUNITY HERE AS
WELL.
JUST WANTED TO PAY THAT RESPECT.
I ALSO WANTED TO ACKNOWLEDGE TO
THE ANCESTORS I BRING TO THE
TABLE.
MY ANCESTORS COME FROM
MOUNVILLE, ALABAMA THAT'S WHERE
WE WERE FROM A LONG TIME AGO
BEFORE WE MOVED TO MISSISSIPPI
AND THE PEOPLE I COME FROM ARE
CALLED THE PEOPLE FROM THE OTHER
SIDE, BECAUSE WE WERE FROM THE
OTHER SIDE IN ALABAMA AND
ANCIENT MISSISSIPPI AND PART OF
THE MOUND BUILDING PEOPLES.
THIS IS PROBABLY WHAT IT LOOKED
LIKE AND THEN SETTLED IN
MISSISSIPPI AND ACKNOWLEDGING
SOME OF MY ANCESTORS WHO I COME
FROM WHO I HOPE ARE WITH ME
TODAY ON THE JOURNEY AND DOING
THIS WORK AND I'D BE REMISS IF I
DIDN'T ACKNOWLEDGE MY DAUGHTER
AND MY FAMILY.
FOR THOSE WHO ARE NEW TO THE NIH
EXPERIENCE AND I KNOW WE HAVE
SOME GUESTS HERE SO I WANTED TO
PUT UP A SLIDE AND IT'S A GOOD
REMINDER OF WHY WE'RE AT NIH AND
WHAT WE ARE DOING HERE.
NIH IS BASICALLY ARE THE LARGEST
PUBLIC FUNDER OF BIOMEDICAL
RESEARCH IN THE WORLD.
THE MISSION IS TO SEEK
FUNDAMENTAL KNOWLEDGE ABOUT THE
BEHAVIOR OF LIVING SYSTEMS AND
REDUCE ILLNESS AND DISABILITY.
WE HAVE LABORATORIES ON CAMPUS
AS WELL.
WE CONDUCT OUR OWN RESEARCH AND
WE SUPPORT RESEARCH SCIENTISTS
IN UNIVERSITIES, METASCHOOLS,
HOSPITALS, INSTITUTIONS AND
TRIBAL COMMUNITIES AND I'LL TALK
MORE ABOUT THAT IN A MINUTE.
IT'S A COMPETITIVE REVIEW
PROCESS TO GET ACCESS TO THOSE
GRANTS.
WE ALSO TRAIN RESEARCH
INVESTIGATORS.
THERE'S A BIG WORKFORCE
DEVELOPMENT COMPONENT AT THE NIH
AND OF COURSE WE ALSO FOSTER
MEDICAL COMMUNICATION AND
INFORMATION TRANSMITTING THAT
KNOWLEDGE TO OUR COMMUNITIES.
WE SIT IN THE DEPARTMENT OF
HEALTH AND HUMAN SERVICES.
YOU CAN SEE NIH IS ONE OF MANY
FOR THOSE FAMILIAR WITH HRSA AND
INDIAN HEALTH SERVICE AND OTHERS
YOU SEE WHERE NIH IS ON THAT.
OUR OFFICE SITS IN THE OFFICE OF
THE DIRECTOR AND WE'RE ONE OF 14
OFFICES IN THE PROGRAMMING,
TRAINING AND INITIATIVES, AND
WORK WITH THE 27 INSTITUTES AND
CENTERS OF THE NIH.
WE'RE PRETTY BIG.
EACH OF THESE INSTITUTES AND
CENTERS HAVE THEIR OWN APPROACH
TO DOING EVERYTHING SO IT'S KIND
OF LIKE STATES AND THE EXAMPLES
OF SOME INSTITUTES AND CENTERS,
NATIONAL INSTITUTE OF DRUG
ABUSE, NATIONAL CANCER INSTITUTE
AND SO FORTH.
WE'RE WORKING WITH ALL THOSE.
BEFORE I GO ANY FURTHER, I ALSO
WANT TO PAY MY RESPECTS AND
GRATITUDE AND THANK YOU TO DR
DR. KATHY ETZ.
SHE WAS THE VISIONARY FOR THROW
AND I WANT TO ACKNOWLEDGE HER
AND I'LL EMBARRASS HER RIGHT NOW
AND SHE'S SITTING BACK THERE AT
THE NATIONAL INSTITUTE OF DRUG
ABUSE AND LEADS A PROGRAM SHE'LL
TALK ABOUT LATER BUT WANT TO
MAKE SURE TO ACKNOWLEDGE HER AND
MY PREDECESSOR DR. DAVID WILSON
THANK YOU FOR YOUR LEADERSHIP
AND VISION SO WE CAN BE HERE.
IT STARTED IN 2015 SO WE'RE
STILL NEW KID ON THE BLOCK AT
NIH.
THERE'S A STRATEGIC PLAN
DEVELOPED FROM 2019 TO 2023.
SO WE'RE UP ENDING THAT CYCLE
AND WILL TALK ABOUT A STRATEGY
PLAN MOVING FORWARD WITH A NEW
VISION.
THE GOAL IS TO FOCUS ON
COMMUNICATION AND COLLABORATION,
BUILDING RESEARCH CAPACITY,
EXPANDING RESEARCH AND BUILDING
CULTURAL COMPETENCY AND
COMMUNITY ENGAGEMENT AT THE NIH
AND EXTERNALLY WITH OUR RESEARCH
PARTNERS AS WELL AS TRIBAL
COMMUNITIES.
SOME OF THE ACCOMPLISHMENTS TO
APRIL 2023, I'M MAKING THAT MY
MARK DATE BECAUSE THAT'S WHEN I
STARTED.
I'M ACKNOWLEDGING SOME
ACCOMPLISHMENTS THAT WAS
DEVELOPED IN THE LAST YEAR AND
PREVIOUSLY BY OUR PREDECESSORS.
NIH INVESTMENT IN NATIVE
RESEARCH HAS INCREASED IN THE
LAST DECADE FROM $170 MILLION IN
FISCAL YEAR 2018 TO MORE THAN
$300 MILLION IN FISCAL 2020.
I CAN TELL YOU EVEN WITH THE
PROGRAM ALONE THE NUMBER IS
SMALL COMPARED TO OUR RECENT
JUMP.
THERE'S BEEN CLEAR COMMITTED
RESEARCH BY NIH TO INCREASING
SUPPORT FOR NATIVE RESEARCH.
THE THRO OFFICE AND THERE'S A
NEW CONSULTATION POLICY WITH THE
TRIBAL CONSULTATION TOOL KIT.
YOU HAVE THE OUTLINE OF THAT IN
YOUR BINDERS.
IF YOU HAVE QUESTIONS ABOUT THAT
WE'RE HAPPY TO ANSWER THEM.
THERE'S ALSO ISSUED IN THE LAST
YEAR A NATIVE SPECIFIC
SUPPLEMENTAL GUIDANCE FOR DATA
SHARING AND THE BEST PRACTICES
FOR RESPONSIBLE MANAGEMENT AND
SHARING OF NATIVE PARTICIPANT
DATA.
WE'LL EXPAND IN MORE DEPTH IN
THE NEXT YEAR AND I'LL TALK MORE
ABOUT THAT IN A MINUTE.
WE HELD A TRADITIONAL MEDICINE
SUMMIT LAST YEAR ATTENDED BY 40
LEADERS ACROSS THE COUNTRY AND
BE ANOTHER FORTHCOMING SPONSORED
FROM THE WHITE HOUSE AND WE'LL
BE PARTNERING WITH THAT IN
SEPTEMBER.
AND WE ALSO HAVE A COLLABORATION
HERE FOR THE TRIBAL UNDER
GRADUATE TRAINING PROGRAM WHICH
IS NEW AND COMING OUT.
OUR OFFICE SPENDS A LOT OF TIME
DOING BEHIND THE SCENES
TECHNICAL ASSISTANCE AND PROBLEM
SOLVING WITHIN OUR I.C.s AND IN
PARTNERSHIP WITH TRIBAL NATION.
IF AN ISSUE COMES UP IN NATIVE
COUNTRY AND THERE'S A QUESTION
FRANKLY IT GOES THREW --
THROUGH OUR OFFICE AND WE ROLL
WITH IT AND DO EDUCATION AT THE
NIH AROUND NATIVE RESEARCH AND
RESEARCH PROTOCOLS.
MOST THRO ACTIVITIES HAVE AROUND
BUILDING CAPACITY AND EXPANDING
RESEARCH WITHIN OUR TRIBES,
FORMING PARTNERSHIPS WITH TRIBAL
LEADERSHIP AND INCREASING
AWARENESS OF RELEVANT RESEARCH
OPPORTUNITIES.
GETTING INFORMATION OUT SO
PEOPLE KNOW THEY HAVE ACCESS TO
CERTAIN GRANTS.
ESPECIALLY NATIVE-FOCUSSED
GRANTS AND IDENTIFYING RESEARCH
GAPS.
ISSUES AROUND WHAT ARE THE
HEALTH INEQUITIES WE NEED TO PAY
CLOSE ATTENTION TO AND
PRIORITIZING AND DEVELOPING
EVIDENCE-BASED STRATEGY TO
ADDRESS THAT.
SOME AREAS FOR DEVELOPMENT THAT
WAS DISCUSSED PRIOR TO MY COMING
ON BOARD WAS INCREASING
COLLABORATIONS WITH OTHER HHS
AGENCIES WHICH I 100% AGREE
WITH.
TRIBAL ORGANIZATIONS AND
COLLEGES AND UNIVERSITIES AND
GREATER OUTREACH THERE.
I'LL TALK MORE ABOUT THAT IN A
MOMENT.
TO GIVE AN EXAMPLE OF THE
CONSULTATION WE DO ACROSS THE
NIH AND I.C.s WE WORKED RECENTLY
WITH DR. KATHY ETZ AND THE "ALL
OF US" PROGRAM AND TRIBAL
EPICENTERS AND WE GET REQUESTS
FOR FEEDBACK AND CONSULTATION
AND THINGS LIKE THAT.
MOVING FAR WARD I HAVE A PICTURE
OF A CHOCTAW WOMAN THAT'S
SUPPOSEDLY THE WIFE OF OLSON AND
I HAVE HER PICTURE AS A REMINDER
BECAUSE SHE'S LOOKING AT ME AND
MAKING SURE I STAY ON TRACK AND
HER NAME MEANS A WOMAN TO PREFER
ABOVE OTHERS.
SHE WAS A LEADER IN HER OWN
RIGHT.
I HAVE A LOT TO LIVE UP TO WITH
HER.
OUR VISION NOW IS WE ENVISION
THRO AS A VIBRANT HUB
STRATEGICALLY COORDINATING WITH
HUBS AND ORGANIZATIONS AND
BUILDING RESEARCH THAT BUILDS
HEALTHY LIVES AND HEALTHY
COMMUNITIES.
THE TAC, I'VE SHARED SOME OF
THIS WITH YOU IN A FIVE-PRESENT
PRESENTATION WHEN I FIRST MET
YOU BUT BEAR WITH ME BECAUSE I
WANTED TO SHARE MORE WE
IDENTIFIED CORE VALUES WITH THE
ACRONYM OF CEDAR AND IT'S
MEANINGFUL TO ME AS A CHOCTAW
PERSON AND IT IS TO A NUMBER OF
OUR TRIBAL COMMUNITIES AS
IMPORTANT MEDICINE.
SO "C" STANDS FOR CREATIVITY.
OUR COMMITMENT TO SUPPORTING NIH
TO MOVE BEYOND CONVENTIONAL
APPROACHES TO SCIENCE, EMPLOYING
INNOVATIVE, INDIGENOUS-CENTERED
IDEAS AND METHODS TO ENSURE
SCIENCE DRIVES SUSTAINABLE
POPULATION HEALTH CHANGE.
I SAY INDIGENOUS WAYS OF BEING.
ETHICS IS "E".
WE WANT TO MAINTAIN AND HOLD THE
HIGHEST STANDARDS OF ETHICAL
BEHAVIOR AND WANT TO BE
CULTURALLY RESPONSIVE, REFLEXIVE
AND AWARE AND DEMONSTRATE
HONESTY IN OUR TRANSACTIONS.
"D" IS FOR DETERMINATION AND
HONORING THE RIGHTS FOR TRIBES
TO BE SELF-DETERMINING.
ACCOUNTABILITY IS "A", TO HOLD
OURSELVES ACCOUNTABLE FOR THE
QUALITY AND TIMELINESS AND
IMPACT OF OUR WORK AND THE
COMMITMENT TO TRIBAL COMMUNITIES
AND PARTNERS AND NIH FAMILY.
THAT ACCOUNTABILITY WILL
ULTIMATELY ENGENDER BETTER TRUST
AND BUILD SOLIDARITY AND
STRENGTHEN RELATIONSHIPS AND
FINALLY RESPECT AND
RESPONSIBILITY.
WE RESPECT THE TALENT OF OUR
TRIBAL NATIONS AND NIH AND
PARTNERS.
WE USE COMPASSION AND THESE ARE
THINGS WE HOLD AS ASPIRATION.
WE USE CULTURALLY INFORMED
DISCOVER TRY TO HEALTH EQUITY OF
NATIVE PEOPLE THROUGH FOUR
ELEMENTS.
ADVANCING CULTURALLY DERIVED
COMMUNITY-INFORMED BIOMEDICAL,
SOCIAL AND BEHAVIORAL RESEARCH.
CULTIVATING A CULTURALLY
INFORMED BIOMEDICAL, SOCIAL AND
BEHAVIORAL HEALTH RESEARCH
WORKFORCE AT NIH AND EXTRAMURAL.
GROWING TRIBAL ENGAGEMENT AND
CONSULTATION AND COORDINATING
COLLABORATING ON AIAN
COMMUNITIES.
AND ONE, ADVANCING THE
CULTURALLY DERIVED,
COMMUNITY-INFORMED BIOMEDICAL,
SOCIAL AND BEHAVIORAL RESEARCH.
IT'S INGENUITY AND CULTURALLY
APPROPRIATE ACROSS SCIENCES.
THIS BUILDS ON PRESIDENT BIDEN'S
INITIATIVE AND MANDATE TO HAVE
FEDERAL AGENCIES INCORPORATE
INDIGENOUS KNOWLEDGES IN OUR
WORK AND THAT'S WONDERFUL.
WE'RE CENTERING THAT AND HOPING
TO BUILD THAT OUT TOO.
TIDE SO THAT IS INDIGENOUS
KNOWLEDGE AND INTERVENTIONS BY
AND FOR OUR COMMUNITIES.
CENTERING OUR CULTURAL
KNOWLEDGES, OUR COMMUNITY
ENGAGEMENT AND CULTURAL
PROTOCOLS THROUGH ALL PHASES OF
RESEARCH.
THAT INCLUDES NATIVE-SPECIFIC
NOFOs AND ACROSS INITIATIVES
WHEN POSSIBLE AND REACHING OUT
TO PARTNERS AT DOI OR FDA OR
OTHER AREAS WHERE IT MAKES SENSE
WE MAKE PARTNERSHIPS.
AND THERE'S HEALING INITIATIVES
AND BOARDING SCHOOL INITIATIVES,
NIH IS AT THE TABLE TO BE
FORWARD THINKING AND DESIGNING
INTERVENTIONS RESPONSIVE TO
THOSE ISSUES IN OUR COMMUNITIES.
TWO, CULTIVATING A CULTURALLY
INFORMED WORKFORCE.
THAT INVOLVES TWO FRONTS.
DEVELOPING IT INTERNALLY AT THE
NIH AND A REPRESENTATIVE
EXTERNAL WORKFORCE AS WELL.
WE NEED MORE NATIVE RESEARCHERS.
WE DON'T NEED MORE WE NEED MORE
NATIVE RESEARCHERS BUT NOT
RESEARCHERS ON NATIVE PEOPLE.
IT'S IMPORTANT WE BUILD OUR
WORKFORCE.
WE BUILD IT THROUGH TECHNOLOGY
ADVISING THROUGH NIH AND HOLDING
OUR CONVENINGS AN CONDUCTING
OUTREACH IN THE INTERNAL
WORKFORCE AND WE'RE ALSO
BUILDING OUT AND TRYING TO
CONNECT TO OUR NATIVE STAFF HERE
AT THE NIH THAT WE GET TOGETHER
AND HAVE A PLACE AND IT CREATES
A BETTER PLACE FOR PEOPLE TO
FLOURISH IN THERE ARE WORK
ENVIRONMENT BUT ENHANCE THE
PROBABILITY OF INCREASING OUR
NATIVE RESEARCH WORKFORCE IF
THERE'S THAT KIND OF CONNECTIONS
MADE BUT BOTTOM LINE I HOPE WE
CAN WORK HARD IN BUILDING THAT
EXTRAMURAL WORKFORCE IN
COMMUNITY.
SO BUILDING COMMUNITY-BASED
RESEARCHERS NOT JUST
UNIVERSITY-BASED RESEARCHERS.
SO THAT OUR COMMUNITY MEMBERS
CAN RETURN HOME OR STAY AT HOME
TO SERVE THEIR PEOPLE IN THE WAY
THAT MAKES THE MOST SENSE.
WE'RE HOPING TO DO THAT AND ALSO
BUILDING OUT WORK WITH OUR TCUs
AND OTHER NATIVE-SERVING
ORGANIZATIONS THROUGH THAT
IMPERATIVE.
THE THIRD IS GROWING THE TRIBAL
ENGAGEMENT AND CONSULTATION.
THAT ENSURES FORMAL CONSULTATION
AND WE HAVE THE TOOLKIT WE
TALKED ABOUT EARLIER.
WE NEED TO ENSURE TRIBES KNOW
THEY NEED TO UNDERSTAND WHAT THE
NIH IS, WHAT TOOLS ARE AVAILABLE
AND WHAT TECHNOLOGIES HAVE
AVAILABLE TO SOLVE OUR MOST
DEEPLY ENTRENCHED HEALTH
CHALLENGES.
WE DON'T ALWAYS DO A GREAT JOB
OF COMMUNICATING THAT.
WE NEED TO DO THAT.
CONSULTATION NEEDS TO BE
CREDIBLE AND RESPONSIVE TO THE
NEEDS OF OUR TRIBES INCLUDING
RESPECTING THE DEMAND ON TRIBAL
LEADERS AND WORKING TO
STREAMLINE CONSULTATION SO IT'S
COMPREHENSIVE AND COORDINATED
ACROSS THE NIH.
WE DON'T WANT TO END UP WITH A
SITUATION WE'VE HAD IN THE PAST
WHERE I HAD A TRIBAL LEADER TELL
ME I'VE HAD 15 REQUESTS FOR
CONSULTATIONS THIS YEAR.
THAT'S TOO MUCH.
AND FOR PEOPLE TUNE OUT AFTER
THAT MANY REQUESTS.
WE WANT TO MAKE SURE THEY'RE
TIMELY AND NOT BURDENSOME.
AND ONE ISSUE WE SPEND TIME ON
IS TRIBAL SOVEREIGNTY, DATA
SOVEREIGNTY AND CODES AND
ORDINANCES AND THINGS LIKE THAT.
WANT TO INCREASE OUR SCIENTIFIC
INTEGRITY AND SOCIAL
RESPONSIBILITY.
AND COORDINATION AND
COLLABORATION ACROSS NIH AND HHS
AND WE HAVE TO BUILD OUR
COALITIONS AND WORK ON THAT.
BEING ABLE TO COORDINATE
RESEARCH AND RESEARCH-RELATED
ACTIVITIES INCLUDING
PRESIDENTIAL INITIATIVES DOING
MORE LISTENING SESSIONS AND
CONSULTATIONS EVEN OUT OF OUR
OFFICE.
AND ENSURE DISSEMINATION ACROSS
I.C. COORDINATED AND TAC
INFORMERED POLICIES INVOLVING
COLLABORATION.
I WANT TO HIGHLIGHT A COUPLE
CLOSING THINGS ABOUT THE
CHALLENGE IN INDIAN COUNTRY AND
ALASKAN NATIVE COMMUNITIES.
JUSTIFIABLE HISTORICAL MISTRUST.
IT'S BASED ON ABUSES AND THE
OTHER IS INVISIBILITY.
WE'RE INVISIBLE.
THERE'S FEWER NUMBERS OF US IN
THE RESEARCH WORKFORCE AND THE
OTHER ISSUE IS WE'RE NOT IN THE
DATA.
WE'RE NOT DRIVING THE DATA AND
IN THE DATA SO IT'S HARD TO GET
POLICIES MADE.
THESE ARE CHALLENGES WE FACE AS
NATIVE PEOPLE IN THE SYSTEMS.
SMALL SAMPLE SIZES.
UNIQUE ISSUES OF RURAL RESEARCH
WHEN YOU'RE DOING AN HIV/AIDS
VAN COMES IN AND THEY SET UP BY
THE BARBERSHOP AND IT CREATES
UNIQUE DEMANDS AND ISSUES FOR
DOING SMALL COMMUNITY-BASED
RESEARCH IN OUR RURAL
COMMUNITIES.
SAMPLING IS A BIG ISSUE TOO AND
REPRESENTATION ESPECIALLY IN
URBAN COMMUNITIES.
AND MEASURES, A LOT OF MEASURES
DON'T REPRESENT OUR CULTURE AND
THINGS MEANINGFUL TO US.
AT NIH WE HAVE THE OPPORTUNITY
TO HELP TO IDENTIFY CONSTRUCTS
AND MEASURES THAT ARE
MEANINGFUL, IDENTIFYING THINGS
THAT HELP US DO WELL NOT JUST
THINGS THAT HELP US DO POORLY.
WHAT IS PROTECTIVE?
HOW CAN WE BUILD INTERVENTIONS
AROUND WHAT IS PROTECTIVE AND
BEAUTIFUL ABOUT OUR COMMUNITIES.
THE OTHER THING IS LET'S BE
FRANK, THOUGH WE'RE A DISEASE
FOCUSSED INSTITUTE, SOMETIMES WE
MIGHT HAVE INITIATIVES OR IDEAS
ABOUT HELPING TO REDUCE BURDEN
IN A PARTICULAR DISEASE STATE
BUT SOMETIMES IN OUR COMMUNITIES
REALLY COMMUNITIES ARE MORE
INTERESTED IN THE STRUCTURAL
DETERMINATES OF WHAT IS CAUSING
THE DISEASE STATES AND IT
REQUIRES INNOVATIVE WAYS OF
LOOKING AT STRUCTURAL
DETERMINATES OF HEALTH OR SOCIAL
AND HISTORICAL DETERMINATES OF
HEALTH.
MULTI-LEVEL INTERVENTIONS NEEDS
TO HAPPEN.
WE'RE NOT A SINGLE ISSUE PEOPLE.
BECAUSE OF THE HISTORICAL TRAUMA
AND OTHER STRUCTURAL DYNAMICS
THAT ARE CAUSING HIGH LEVELS OF
POVERTY AND INACCESSIBLE ACCESS
TO GOOD HEALTH AND CAN GO DOWN A
BUNCH OF THOSE.
ALL THAT LEADS TO DIFFERENT
KINDS OF HEALTH CONSEQUENCES.
WE'RE MANAGING MULTIPLE AND
THAT'S SENDEMICES.
WE'RE DEALING WITH HIGH RATES OF
PTSD AND HIGH RATES OF HEART
DISEASE AND WHEN A PANDEMIC
COMES IN IT EXPLOITS THOSE
CONDITIONS AND YOU SEE THE
MORTALITY AND LIFE EXPECTANCY GO
DOWN AND WHEN WE HAVE CRISIS
SITUATIONS THAT ARISE, HEALTH
ISSUES FLARE UP AND HAVE TO WORK
TO DO TO PREPARE FOR FUTURE
PANDEMICS.
THE OPIOID EPIDEMIC IS HUGE AS
IS SUICIDES AND RECOGNIZE THESE
ARE HIGH PRIORITY AREAS TRIBAL
LEADERS HAVE BEEN EXPRESSING AND
THE OTHER IS CLIMATE CHANGE AND
THE IMPACT OF CLIMATE CHANGE.
WHOLE COMMUNITIES ARE HAVING TO
RELOCATE AND HAS AN IMPACT OF
WELL BEING OF FULL COMMUNITIES.
THESE ARE SOME ISSUES WE'RE
AWARE OF THAT ARE PRESSING IN
INDIAN COUNTRY.
AND AND NIH IS IS PREPARED TO
COMMIT TO PROGRAMS AND WE'LL
LOOK AT LISTENING SESSIONS AND
TRIBAL CONSULTATION AROUND
DEVELOP NEW STRATEGIC PLAN TO
ALIGN WITH THE TAC PRIORITIES AS
WELL AS COMMUNITY-BASED
PRIORITIES.
WE'LL TALK ABOUT THAT TOMORROW.
WE'LL TALK ABOUT INDIGENOUS
KNOWLEDGE GUIDELINES.
AND WE'RE DOING TRIBAL
CONSULTATION WORK IN DEVELOPING
IDEALLY A POLICY AS WELL AS
GUIDELINES AROUND BIO SPECIMEN
AND GENOMIC AND GENETIC DATA TO
WE'RE CLEAR ON TRIBAL
SOVEREIGNTY AND DATA COLLECTION
TO TRANSFER AND DISPOSAL AND
RECOGNIZING WE NEED TO DEVELOP
GUIDELINES AROUND SECONDARY
DATA, BIG DATA WE'LL LOOK AT THE
POSSIBLE CROSS-CUTTING
INITIATIVES WE CAN JOIN AND HELP
DEVELOP AND WORK WITH CLOSELY
WITH NIH IRB TO LOOK AT THE
PROCESS WHETHER AN AD HOC REVIEW
GROUP OR MEMBERSHIP BUT MAKE
SURE WE'RE AT THE TABLE.
AND WE DO HAVE TWO POSITIONS
THAT ARE OPEN AND COME SEE ME IF
YOU HAVE NOMINEES FOR THRO STAFF
POLICY ANALYST, PREFERABLY Ph.D.
LEVEL BUT OPEN TO OTHERS AS
WELL.
SEE ME IF YOU KNOW OF ANYBODY
WHO MAY BE INTERESTED IN JOINING
US AT THE NIH AND THAT'S IT.
THANK YOU.
ANY QUESTIONS AND THOUGHTS?
COMMENTS?
>>I'D LIKE TO SAY THIS IS A
BREATH OF FRESH AIR
[OFF-MIC]
>>THANK YOU.
>>IT DOESN'T FEEL LIKE IT'S
BEEN THREE MONTHS YOU'VE BEEN
HERE.
>>IT DOESN'T FEEL LIKE THREE
MONTHS.
IT SEEMS LONGER.
>>THANK YOU.
THAT WITH YOU POWERFUL.
I'D LIKE A COPY OF IT.
[OFF-MIC]
>>WE'RE ON THE SAME WAVE
LENGTH.
GOOD.
>>DR. WALTERS, I KNOW YOU SAID
YOU HAVE TWO POSITIONS OPEN BUT
WHAT DO YOU ENVISION AS THE NEED
FOR THIS SO ACTUALLY BE ABLE FOR
THRO AND WHAT'S THE ACTUAL
NUMBER OF POSITIONS?
THERE'S REGIONAL FOCUS.
>>I LIKE YOUR QUESTION BECAUSE
I'VE BEEN THINKING ABOUT IT A
LOT AND DON'T HAVE A CLEAR
ANSWER YET BUT OPEN TO YOUR
IDEAS AND LOOK FORWARD TO
SHARING YOUR IDEAS AROUND
REGIONAL REPRESENTATION.
WE NEED A CORE THERE'S SIX OF
US.
AND DR. SHEILA CALDWELL JUST
JOINED US FROM THE NARCH AND NOW
IS IN THE THRO OFFICE AND BRINGS
A BASIC SCIENCE PERSPECTIVE AND
TRAINING AND DEVELOPMENT AROUND
WORKFORCE DEVELOPMENT.
I'M STARTING TO THINK ABOUT THE
AREAS THAT WE NEED TO BE
BUILDING OUT IN AS A CORE GROUP.
IT WOULD BE NICE TO HAVE TWO OR
MORE PEOPLE.
I WOULD LOVE OUR OFFICE TO BE
SUPER MILLION DOLLARS IN BUDGET
BUT THAT'S DOWN THE LINE.
I HAVE VISION TO HAVE REMOTE
REPRESENTATIONS AND FORWARD
THINKING ABOUT GROWTH AND
DEVELOPMENT.
IT WOULD BE NICE TO HAVE A CORE
WITH REGIONAL REPRESENTATION SO
PEOPLE HAVE A REGIONAL LIAISON
THEY CAN CONNECT WITH AND WORK
WITH AT THE LOCAL, REGIONAL
LEVEL.
THAT IS IDEAL.
IF YOU HAVE OTHER IDEAS, I'M
OPEN TO IT AND ONE THING WE'LL
BE THINKING ABOUT WITH THE
STRATEGIC PLAN AS WELL.
>>WE'RE RUNNING A LITTLE BIT
AHEAD IF THERE'S QUESTIONS.
>>THAT'S NOT RIGHT.
>>I'D LIKE TO INTRODUCE TARA
SCHWETZ THE ACTING PRINCIPAL
DEPUTY DIRECTOR OF THE NIH.
>>GOOD MORNING.
I'M GLAD TO BE HERE AND
FORTUNATELY I CAN'T STAY FOR THE
WHOLE DAY BUT I'M GRATEFUL TO
ALL OF YOU FOR AGREEING TO
PARTICIPATE ON THIS COMMITTEE.
WE'RE VERY EXCITED TO HAVE
KARINA HERE AT NIH AND I CAN'T
BELIEVE IT'S ALREADY BEEN THREE
MONTHS.
TIME FLIES WHEN YOU'RE HAVING
FUN.
I LOOK FORWARD TO ALL THE
EXCITING THINGS THAT YOU HAVE
PLANNED AND IN STORE FOR WORKING
TOGETHER WITH THIS COMMITTEE AND
THE COMMITTEES INVOLVED.
THANK YOU VERY MUCH.
>>THANK YOU.
>>THANK YOU, DR. WALTERS FOR
THE PRESENTATION.
WE WENT THROUGH THAT PRETTY
FAST.
THE TIME DID GO REALLY FAST.
>>THANK YOU.
I WANTED TO KNOW YOUR PLANS AND
YOUR THOUGHTS AND TIME LINES FOR
THE NEW STRATEGIC PLAN.
>>THERE'S A GOOD SENSE OF
ISSUES.
ONE IS WHAT'S HAPPENED IN THE
LAST DECADE AND WHERE WE HAVE
BEEN AND WHERE ARE WE NOW.
WE HAVE OUR BASELINE.
I WANT TO GET THAT SHORED UP AND
IN PLACE.
THAT'S GOING TO INFORM THE
STRATEGIC PLAN AS WELL AS I'M
GOING TO HHS REGIONAL MEETINGS
AND I'LL BE MEETING WITH EACH
AND EVERY ONE OF YOU AND HEAR
FROM YOU WHAT SOME PRIORITIES OR
AREAS ARE AND I'LL HAVE A
MEETING TO HAVE A BRAIN STORMING
SESSION TOGETHER TO START THE
PROCESS.
I WOULD LIKE TO HAVE AT LEAST BY
DECEMBER A GOOD SOLID OUTLINE OF
THE STRATEGY PLAN FOR APPROVAL
BY LEADERSHIP HERE.
AND THAT WILL ACCELERATE INTO
THE NEW YEAR SO THAT WE ARE
ACTUALLY STARTING AT SOME POINT
IN 2024 WITH THE NEW STRATEGY
PLAN.
WE'RE SUPPOSED TO HAVE A
STRATEGY PLAN 2024, 2021.
I'M HOPING TO MOVE FAIRLY
QUICKLY.
WE HAVE A DRAFT PLAN FROM THE
PREVIOUS ADMINISTRATION FOR THIS
GOAL BUT COMBINING SOME OF THAT
WITH THE VISION THAT WE'VE BEEN
TALKING ABOUT AND HEARING AT THE
MEETING WHAT THE INTERESTS ARE
AND WHAT YOU'LL WANT TO SEE IS
ALL ROLLED IN.
THANK YOU.
>>WE HAVE A GREEN LIGHT AND
BREAK SCHEDULE.
WE'LL TAKE ABOUT A 25-MINUTE
BREAK.
IS THAT WHAT WE'RE DOING?
AND THEN GO -- SO TAKE A
25-MINUTE BREAK AND SEE YOU AT
10:25 -- OH, 11:25.
WE'LL SEE YOU IN 25 MINUTES.
>>ALL RIGHT.
WE HAVE A PRESENTATION READY AND
HAD A NICE LONG BREAK AND
EVERYBODY'S READY TO ROCK AND
ROLL.
WE'LL HAVE A PRESENTATION BY THE
NIH HEAL INITIATIVE AND HAVE
DR. ETZ THE DIRECTOR OF THE
NATIVE AMERICAN PROGRAMS AND
SERVING AS THE DIRECTOR OF THE
HEAL INITIATIVE THE INITIATIVE
IS A COLLECTIVE NATIVE EFFORT TO
ADDRESS OVERDOSE, SUBSTANCE
ABUSE, MENTAL HEALTH AND PAIN
PROGRAM AT THE NATIONAL
INSTITUTE ON DRUG ABUSE IN THE
EPIDEMIOLOGY RESEARCH BRANCH AND
SERVED IN ROLES OVER 24 YEARS AS
THE SENIOR ADVISER OF TRIBAL
AFFAIRS AT THE NIH OFFICE OF THE
DIRECTOR.
SO THANK YOU FOR JOINING US
TODAY AND WE LOOK FORWARD TO
YOUR PRESENTATION.
>>THANK YOU SO MUCH.
A MIC CHECK.
FIRST, I WANT TO THANK THE TAC
AND DR. WALTERS AND THE THRO
OFFICE FOR WHEREIN VITTING US TO
BE HERE TODAY.
I'M SUPER DLIEDED TO BE HERE AND
SHARE INFORMATION ABOUT THE NEW
PROGRAM WE ARE LAUNCHING CALLED
THE NATIVE COLLECTIVE RESEARCH
EFFORT TO ENHANCE WELLNESS
ADDRESSING OVERDOSE, SUBSTANCE
ABUSE, MENTAL HEALTH AND PAIN.
I FIRST WANT TO THANK KARINA FOR
HER ACKNOWLEDGEMENT EARLIER AND
NEED TO EXTEND ACKNOWLEDGEMENT
BECAUSE WE RARELY DO THINGS
ALONE.
FIRST I WANT TO ACKNOWLEDGE A
MENTOR OF MINE AT THE NIH AND
TAUGHT ME HOW TO ADVOCATE WITHIN
THE NIH ALSO, ISABEL GARCIA
INSTRUMENTAL IN THE ADVISORY
COMMITTEE AND IN PARTICULAR I
WANT TO CALL OUT DR. TABAK AND
TARA SCHWETZ WITHOUT WHOM WE
ABSOLUTELY WOULD NOT BE HERE.
THE COMMITMENT AND DEVOTION TO
THIS HAS BEEN STEADFAST.
I'M GLAD YOU'LL BE MEETING WITH
LARRY TOMORROW.
FINALLY, I WANT TO CALL OUT JEN
ANDERSON AND RAMA CALOZOWE AND
WITH THAT I'LL TALK ABOUT THE
PROGRAM.
WE WANT TO ACKNOWLEDGE NIH SITS
ON THE LAND OF THE PISCATAWAY
AND ANACOSTAN LAND AND WE HONOR
THE NATIVE PEOPLE THAT BELONG TO
THE LAND AND A TEAMMATE TAUGHT
OUT THE PHRASE ACKNOWLEDGE SAY
VERB.
WE COMMIT TO COMMUNITIES IN OUR
WORK.
I WANT TO BEGIN WITH AN OVERVIEW
OF THE PROGRAM IT'S PART OF A
BROADER INITIATIVE AT THE NIH
CALLED THE HELPING TO END
ADDITION LONG TERM OR HEAL
INITIATIVE HOPEFULLY YOU'RE
AWARE HEAL BOLSTERS RESEARCH TO
IMPROVE TREATMENT FOR OPIOID
ADDICTION AND TREATMENT AND
IMPROVE PAIN MANAGEMENT AND
UNDERSTANDING AND HEALING PAIN.
IT'S ALLOCATED BY CONGRESS TO
ADDRESS THE OPIOID PUBLIC HEALTH
EMERGENCY AND ALL HEAL PROGRAMS
MUST HAVE A FOCUS ON ADDICTION
OR PAIN.
WE EMPHASIZE WELLNESS IN THE
NAME OF THE PROGRAM TO EMPHASIZE
THE APPROACH OF FACING THE
CHALLENGES LIKE THE OPIOID
CRISIS.
YOU CAN FIND MORE INFORMATION BY
FOLLOWING THE LINK ON THE SLIDE
AND WE WANT TO ACKNOWLEDGE ALL
FUNDING FOR THE PROGRAM IS
PROVIDED BY HEAL.
IF ANY OF YOU KNOW HOW I
NORMALLY PRESENT IT'S OFF THE
CUFF.
I NEED TO READ MY SLIDES TO MAKE
SURE WE PRESENT CONSISTENT
INFORMATION TO FORGIVE ME FOR
THAT.
AS BACKGROUND, TRIBAL
CONSULTATIONS WERE HELD IN 2018
AND AGAIN THROUGH THE HEAL
OFFICE IN 2022.
WE WERE HOPING TO LEARN FROM
TRIBAL LEADERS AND
REPRESENTATIVES WHAT THEY WERE
PRIORITIZING TO ADDRESS THE
PUBLIC HEALTH EMERGENCY.
MANY THEMES EMERGED.
SOME OF WHICH WE HEARD FROM
OTHER CONSULTATIONS AND WORKED
WITH THE COMMUNITIES.
I WOULD SAY WE DIDN'T HEAR
ANYTHING COMPLETELY NEW.
IT'S THINGS YOU AS THE TAC HAVE
BEEN TALKING ABOUT SINCE YOUR
INCEPTION.
SOME THINGS I CAN'T DESCRIBE.
SOME ARE LISTED HERE.
FIRST AND FOREMOST WE HEARD THEY
PLAY A HIGH PRIORITY ON
ADDRESSING THE OPIOID CRISIS AND
OPIOID ABUSE AND AMPHETAMINE USE
AND PAIN AND THERE'S EMPHASIS ON
SUPPORTING NATIVE ORGANIZATIONS
TO LEAD RESEARCH.
NOTING THIS REQUIRES A
SIGNIFICANT INVESTMENT IN
BUILDING RESEARCH CAPACITY AND
INFRASTRUCTURE.
THE IDEA FOR US, BY US WAS
EMPHASIZED.
WE LEARNED A SIGNIFICANT NEED
FOR MORE ACCURATE AND REAL TIME
DATA AND DESIGN AND TEST
INTERVENTIONS FOR AND WITH
NATIVE POPULATIONS AND FOR
RESEARCH AND INTERVENTIONS TO
RELY ON INDIGENOUS KNOWLEDGE
INCLUDING THE INCORPORATION OF
TRADITIONAL HEALING PRACTICES,
SPIRITUALITY NOTING THAT'S WHERE
RESEARCH IS DESIRED AND APPROVED
BY THE COMMUNITY AND HOLISTIC
CONCEPTIONS AND STRENGTH BASED
SOLUTIONS.
THE DEFINITION OF PAIN WAS
DISCUSSED THROUGHOUT THE
CONSULTATION INCLUDING DRUGS AS
SELF-MEDICATION FOR PAIN AND
ENCOMPASSING PHYSICAL AND
PSYCHOLOGICAL PAIN ALSO
CONSIDERING SOCIAL DETERMINATES
OF HEALTH AND PAIN ON ADDICTION
OUTCOMES.
IT'S BEEN DESIGN TO DIRECTLY
RESPOND TO TRIBAL CONSULTATIONS
AND WHAT NIH HAS LEARNED OVER
THE YEARS.
THE DRIVING PRINCIPALS HAVE AN
OVERARCHING PRINCIPAL AND LOOK
AT COMMUNITY PRIORITIZED BY
TRIBES AND NATIVE SERVING
ORGANIZATIONS.
ORGANIZATIONS WE'LL REFER TO AS
TNASOs THROUGHOUT THE
PRESENTATION AND I'LL DEFINE
THAT IN A MINUTE.
AND IT'S FOR CULTURALLY GROUNDED
STRATEGIES ULTIMATELY PROMOTING
HEALTH EQUITY.
THE PROGRAM RECOGNIZES TNASOs
ARE BEST POSITION TO IDENTIFY
AND RESPOND TO COMMUNITY NEEDS
THROUGH CULTURALLY GROUNDED AND
THAT KNOWLEDGE SHOULD SERVE AS A
BASIS FOR RESEARCH STRATEGIES
AND BUILD AND SUSTAIN HIGHLY
COLLABORATIVE PARTNERSHIPS AND
AS THEY'RE ESTABLISHED OR
AUGMENTED TO RESPOND TO THE
OPIOID PUBLIC HEALTH EMERGENCY.
AND THEY HAVE SKILLS AND
KNOWLEDGE AND WORKING TOGETHER
WE CAN ACHIEVE COMMUNITY
PRIORITIZED GOALS.
AGAIN THE GOALS OF THE ANCHOR
PROGRAM MAP ON TO WHAT WE HEARD
IN CONSULTATION.
IT SUPPORTS TRIBES AND NATIVE
AMERICAN SERVING ORGANIZATIONS
TO CONDUCT LOCALLY PRIORITIZED
RESEARCH TO ADDRESS OVERDOSE
SUBSTANCE USE AND PAIN INCLUDING
RELATED FACTORS SUCH AS MENTAL
HEALTH AND WELLNESS.
SPECIFICALLY, N CREW HAS THREE
BROAD GOALS TO SUPPORT TNSAOs
AND LEAD PRIORITY RESEARCH
PROJECTS AND ELEVATING AND
INTEGRATING INDIGENOUS KNOWLEDGE
AND CULTURE AND ENHANCE CAPACITY
AND CONDUCT LOCALLY PRIORITIZED
RESEARCH AND NOVEL, ACCESSIBLE
GROUNDED TECHNICAL ASSISTANCE
AND TRAINING AND TOOLS AND TO
IMPROVE ACCESS TO AND THE
QUALITY OF DATA ON SUBSTANCE
USE, PAIN AND THE RELATED HEALTH
AND WELL-BEING FACTORS IN LOCAL
COMMUNITY DECISION MAKE.
THEY'RE PURPOSELY BROAD TO
FACILITATE SUPPORTING WHAT
COMMUNITIES PRIORITIZE WITHIN
THE PARAMETERS OF THE HEAL
INITIATIVE.
THERE'S KEY DEFINITIONS.
FIRST, TRIBES AND NATIVE
AMERICAN SERVING ORGANIZATION
FEDERALLY OR STATE RECOGNIZED
TRIBES OR ORGANIZATIONS WITH A
CORE MISSION TO SERVE AND/OR
TRACK OR HAVING A TRACK RECORD
AND SERVING NATIVE AMERICANS AND
POISED TO REACH THE POPULATION.
SECOND, FOR THE TURNS OF THIS
PROGRAM, NATIVE AMERICANS ARE
DEFINED AS AMERICAN INDIANS,
ALASKAN NATIVES OR AMERICAN
HAWAIIANS AND ORGANIZATIONS CAN
DOCUMENT A TRACK RECORD OF
PARTNERING SUCCESSFULLY WITH
NATIVE AMERICAN COMMUNITIES.
THIS IS A SOMEWHAT COMPLICATED
SLIDE AND BREAKS DOWN THE N CREW
PROGRAM.
LET'S TRY TO LOOK CAREFULLY AT
THE BOX AND BREAK IT DOWN.
IN THE PURPOSE BOX NIH INTENDS
TO COMMIT APPROXIMATELY $268
MILLION OVER SEVEN YEARS TO
SUPPORT THE N CREW PROGRAM.
BELOW THAT IN THE RED BOX THERE
ARE TWO PHASES PLANNED FOR THE N
CREW PROGRAM.
BEGINNING WITH PHASE 1.
WE HAVE A LOT OF EMPHASIS ON
THAT AND PHASE 1 IS
APPROXIMATELY 2 YEARS AND WE
ANTICIPATE COMMITTING $25
MILLION TO APPLICATION IN
RESPONSE TO THE RESEARCH
OPPORTUNITY ANNOUNCEMENTS
CURRENTLY ON THE STREET.
THE COMPONENTS ARE BROKEN DOWN
ON THE PAR LEFT SIDE.
IT'S THE RESEARCH AND DATA
PROJECTS AND RESOURCE NETWORK OR
NRRN AND ANTICIPATE OTHER
POSSIBLE COMPONENTS DETERMINED
TO BE NECESSARY AS THE PROGRAM
EVOLVES.
WE DON'T KNOW WHAT THOSE ARE YET
BUT HOPING TO ADD ADDITIONAL
COMPONENTS AS NECESSARY.
THERE'S MANY POTENTIAL OUTCOMES
OF THE PROGRAM.
SOME THE NIH ANTICIPATED BUT
WE'LL BE LEARNING SO WE DON'T
KNOW YET IF THESE WILL BE THE
OUTCOMES.
SOME REFLECTING OUR DESIRED
OUTCOMES DEVELOPED REFLECT WHAT
WE HEARD IN CONSULTATION FROM
COMMUNITIES.
WE HOPE IT WILL JOIN INEQUITIES
FOR NATIVE PEOPLE THROUGH
SCIENCE-BASED CULTURALLY
RELEVANT AND COMMUNITY-EMBRACED
STRATEGIES.
NEXT WE HOPE TO HAVE WITHIN THE
T/NSAOs AND I HEARD OF
ORGANIZATION BEING LED BY TRIBAL
ORGANIZATIONS WHILE AT THE NIH
AND WHILE RESEARCH CAPACITY AND
INFRASTRUCTURE IS STRONG IN SOME
ORGANIZATIONS ORE ORGANIZATIONS
THAT DESIRE TO BUILD MORE WE
HOPE THE PROGRAM CAN HELP
SUPPORT THAT.
WE WANT TO COLLECT LESSONS
LEARNED AND NATIVE SCHOLARS
WITHIN THE ORGANIZATION.
NEXT WE HOPE TO CONSIDER DATA
SHARING AND STEWARDSHIP OR
COMMUNITIES.
THERE'S MANY POLICIES AND
COMMUNITY PREFERENCES THAT
DETERMINE WHETHER OR WHEN DATA
CAN BE SHARED AND WANT TO LEARN
TOGETHER UNDER WHAT
CIRCUMSTANCES IF ANY DATA
SHARING MAY BE MEANINGFUL,
BENEFICIAL, DESIRED AND
SUPPORTED.
THIS WILL BE SOMETHING THAT
MOVES SLOWLY.
WE'LL BE LEARNING TOGETHER AND
IDENTIFYING TOGETHER.
WE'LL ENSURE ANY ACTIONS TAKEN
ARE IN SUPPORT OF TRIBES AND
NATIVE AMERICAN SERVE
ORGANIZATIONS GOALS FOR THEIR
COMMUNITIES AND BENEFIT NATIVE
PEOPLE AND COMMUNITIES.
MANY ARE AWARE THE WHITE HOUSE
ISSUED GUIDANCE TO FEDERAL
AGENCIES IN 2022 ON RECOGNIZING
AND INCLUDING INDIGENOUS
KNOWLEDGE IN FEDERAL RESEARCH
AND POLICY AND DECISION MAKING
AND THE GUIDANCE WOULD HELP
INTEGRATE INDIGENOUS KNOWLEDGE
TO THEIR WORK SPECIFICALLY
NOTING RESEARCH.
QUO HAVE A TREMENDOUS
OPPORTUNITY TO SHOWCASE THE
CRITICAL ROLE OF INDIGENOUS
KNOWLEDGE AND RESEARCH
REFLECTING WHAT NATIVE PEOPLE
HAVE ALWAYS KNOWN.
THE IMAGE IS TAKEN FROM A NIDA
PROGRAM AND ASKED FOR IMAGES ON
SUBSTANCE ABUSE AND THIS IS FROM
A YOUNG WOMAN NAMED SIERRA FROM
THE OMAHA PANQUA TRIBE AND PAINT
A BLEAK LANDSCAPE AND A CELL
PHONE SHE VIEWS AS A FILTER.
SHE USES HER CELL PHONE TO
CONNECT TO HER RELATIVES AND
THROUGH THAT CONNECTION SHE SEES
MORE HOPE AND A BRIGHTER FUTURE.
IS THE PROGRAM RELIES ON REAL
TRANSACTION AUTHORITIES AND THAT
MIGHT BE A NEW TERM FOR MANY OF
YOU.
IT WAS NEW TO ME.
WE CAM TO COME UP TO SPEED
QUICKLY ON THE TERMS AND THE USE
ENABLES NIH TO CUSTOMIZE
COMPONENT TO MEET THE UNIQUE
PROGRAM NEEDS WHICH INCLUDES
APPLICANT ORGANIZATIONS
SUBMITTING WHAT THEY PRIORITIZE.
THERE'S IMPORTANT CONTEXT FOR
THE PROGRAM.
THE APPLICATION REQUIREMENTS
HAVE BEEN DESIGN WITH
CONSIDERATION OF REDUCING THE
BURDEN TO APPLY WHILE ALSO
SUPPORTING SHARING WITH THE NIH
YOU WOULD LIKE TO SUPPORT.
IT'S NOT THE STANDARD FORUM
WE'RE ASKING FOR IN THE
APPLICATION.
THIS IS USING OBJECTIVE REVIEW
TO MEET OUR PROGRAM NEEDS AND
DOESN'T USE THE NIH PROGRAM
REVIEW PROCESS AND WE HAVE
EVALUATION CRITERIA AND
EMEMPLOYING A NON-TRA DETERMINE
RATING SCALE YOU WON'T SEE OUR
NORMAL 1-9.
INSTEAD WE'RE TALKING HOW LIKELY
THINGS ARE TO SUCCESS OR NOT
LIKELY BUCKETING THEM INTO THREE
BINS.
AND THEY MAY BE ALTERED WITH
DISCUSSIONS WITH THE NIH.
I WOULD LIKE TO INTRODUCE MY
COLLEAGUE JACLYN SMITH TO TELL
YOU ABOUT THE RESEARCH
OPPORTUNITIES ON THE STREET.
THANK YOU.
I'M GOING TO TALK ABOUT AT THE
TWO ACTIVE RESEARCH
OPPORTUNITIES ANNOUNCEMENTS WE
HAVE ON THE STREETS ASSOCIATED
WITH THE PROGRAM AND I'LL START
WITH TRIBES AND NATIVE AMERICAN
ORGANIZATIONS FOR PLANNING OF
RESEARCH AND DATA PROJECTS.
THIS IS APPLICATIONS FROM TRIBES
AND NSAOs TO DEVELOP, PLAN OR
IMPLEMENT RESEARCH STUDIES TO
IMPROVE DATA AND THIS COULD
INCLUDE ACCESS TO DATA, QUALITY
OR AVAILABILITY OF DATA AND ALSO
ENHANCE CAPACITY TO ENGAGE IN
RESEARCH.
THE PROGRAMMERS OF WHAT IT'S
ASKING FOR IS INTENTIONAL BROAD
TO SUPPORT THE SUBMISSION OF
WHAT TRIBES AND NSAOs IN
COMMUNITIES PRIORITIZE.
PROJECTS MUST CLUS A FOCUS ON
OVERDOSE, AND COULD INCLUDE
OPIOIDS OR STIMULANTS AND PAIN
MANAGEMENT BUT DON'T NEED BOTH
BUT MUST WAS ONE OR THE OTHER.
AND THEY MAY INCLUDE EXPERIENCES
OR FACTORS RELATED LIKE WELL AND
MENTAL ILLNESS AND FOR OTHER
FACTORS TO ADDRESS THE SUBSTANCE
ABUSE IN COMMUNITIES.
IT'S IMPORTANT TO UNDERSTAND
WHAT'S NOT FUNDED.
WHAT WILL NOT BE FUNDED IS
DIRECT SERVICES OR PROJECT
SOLELY INTEND TO INTERVENE.
RESEARCH CAPACITY BUILDING NOT
FOCUSSED ON HEAL RELATED
RESEARCH CANNOT BE FUNDED AND
SIMILARLY RESEARCH AND DATA
PROJECTS WOULD A FOCUS ON TOPICS
RELATED TO HEAL INITIATIVE WILL
NOT BE FUNDED.
NOW WE CAN TALK ABOUT WHAT WE
ENCOURAGE.
APPLICANTS ARE ENCOURAGED TO
PROPOSE PROJECT GENERATE
KNOWLEDGE TO INFORM DECISIONS
AND IMPLEMENT SUSTAINABLE
STRATEGY TO ADDRESS OVERDOSE
SUBSTANCE ABUSE OR PAIN
MANAGEMENT.
APPLICANTS ARE ALSO ENCOURAGES
TO CONSIDER A RANGE OF
INDIGENOUS APPROACHES AND THIS
CAN GO TO KNOWLEDGE OF
RESEARCHERS PRIORITY
CONSIDERATION FOR FUNDING FOR
THIS ROA WILL BE TO APPLICANTS
TO ENHANCE RESEARCH AND CAPACITY
AND PARTICIPATE IN FUTURE NIH
FUNDING AND MERITORIOUS
APPLICANTS WHO HAVE NOT
PREVIOUSLY APPLIED FOR OR
RECEIVED NIH FUNDING.
LET US SWITCH GEARS AND TALK
ABOUT THE SISTER RESEARCH
OPPORTUNITY ANNOUNCEMENT THAT
WILL ESTABLISH A NATIVE RESEARCH
RESOURCE NETWORK.
THIS ROLE IS TO SOLICIT
APPLICATIONS FROM TRIBES, NATIVE
AMERICAN SERVING ORGANIZATIONS
AND/OR ALLY ORGANIZATIONS TO
PARTICIPATE IN A NATIVE RESOURCE
NETWORK DURING PHASE 1.
OF N CREW AND IT WILL LOOK TO
DEVELOP AND PROVIDE
COMPREHENSIVE REAL TIME RESOURCE
TO SUPPORT FUNDED UNDER 007 AND
THEY WILL CONDUCT PROJECTS AND
ALSO IDENTIFY AND IMPLEMENT
ACTIVITY TO MAXIMIZE LONG-TERM
SUSTAINABILITY OF NATIVE
AMERICAN SERVING ORGANIZATIONS.
FOR PHASE 1 THE NETWORK IS
STRUCTURED TO PROVIDE A BROAD
RANGE OF RESEARCH SUPPORT THAT
CANNOT BE FULLY PREDICTED IN
ADVANCE OF RECEIVING
APPLICATIONS AND ALSO STRUCTURED
TO BE AGILE TO ALLOW FOR
FLEXIBILITY AND MODIFYING
ACTIVITIES, PARTNERS AND FORMAL
PARTNER STRUCTURES.
SO THIS SLIDE HAS A LOT OF
INFORMATION ON IT.
IT PROVIDES EXAMPLES OF
ACTIVITIES NIH AN ITS TIS
PATESES MAY BE NEED AND INCLUDE
ANOTHER CATEGORY BECAUSE IT
RECOGNIZE THE TRIBES AND
NATIVE-AMERICAN SERVING
ORGANIZATIONS AND ALLY
ORGANIZATIONED ARE BEST
POSITIONED TO IDENTIFY SUPPORTS
NEEDED.
IN THE INTEREST OF TIME I'M
GOING TO SKIP OVER A LOT OF THE
EXAMPLES AND ON THE SLIDE IN
THESE AREAS THEY'RE LISTED IN
THE ROA WITH ADDITIONAL ONES AND
I WILL QUICKLY HIGHLIGHT THAT
NIH FOR THE SECOND CATEGORY THE
COORDINATION AND REPORTING WE'RE
SEEKING TWO OR MORE ORGANIZATION
TO LEAD ORGANIZATION AND
RECORDING ACROSS THE PROGRAM.
HAVING MORE THAN A SINGLE
ORGANIZATION PROVIDES
COORDINATION ALLOWS FOR SOME
OPPORTUNITY FOR TRIBES AND
NATIVE-AMERICAN SERVING
ORGANIZATION TO SPECIFY HOW AND
WITH WHAT ORGANIZATIONS THEY
WOULD LIKE TO COLLABORATE FOR
COORDINATION.
AND I'LL WRAP UP MY PORTION
WHICH IS A QUICK SNAPSHOT OF KEY
DATES.
WE HAVE THREE WEBINARS
ASSOCIATED WITH THE PROGRAM.
THE FIRST WAS A COUPLE WEEKS AGO
AND TALKED ABOUT THE HISTORY OF
THE PROGRAM AND THE TWO RESEARCH
ANNOUNCEMENTS AND SOME
HIGH-LEVEL APPLICATION DETAILS.
THAT SHOULD BE AVAILABLE ON THE
NCREW WEBSITE ANY MINUTE NOW SO
WATCH IT IF YOU HAVEN'T ALREADY.
WE HAVE AN UPCOMING WEBINAR AT
THE END OF THE MONTH THAT WILL
DEMO HOW TO REGISTER YOUR
ORGANIZATION AND COMMENTS AND
WALK THROUGH A HYPOTHETICAL
APPLICATION SUBMISSION AND
SHARING SCREENS AND COMMON
MISHAPS AND HOW TO TROUBLE SHOOT
THOSE AND WE HAVE ANOTHER
WEBINAR OCTOBER 3 AND THAT IS
MORE OF AN OFFICE HOUR QUESTION
AND ANSWER FORMAT.
IN TERMS OF HEADLINES, WE HAVE A
LETTER OF INTENT THAT'S
ENCOURAGED BUT OPTIONAL AND
WOULD LIKE THAT BY SEPTEMBER 1.
ERA REGISTRATION IF THE
APPLICANT ORGANIZATION IS NOT
ALREADY REGISTERED IN THE ERA
COMMONS DO SO BY SEPTEMBER 20 AT
THE LATEST TO ENSURE TIME FOR
THE REGISTRATION TO BE COMPLETE
BEFORE THE APPLICATION IS DUE
WHICH IS NOVEMBER 1 AND WE
ANTICIPATE A START DATE IN JUNE.
I'LL TURN IT BACK OVER TO KATHY.
>>THANK YOU.
>>JUST SOME WRAP-UPS.
N CREW IS GROUNDED IN TRIBAL
SOVEREIGNTY.
THE RESEARCH PRIORITY OF NATIVE
COMMUNITIES IS ESSENTIAL FOR
SUSTAINABLE INTERVENTION
STRATEGIES ULTIMATELY PROMOTING
HEALTH EQUITY AND LEVERAGING
OTHER TRANSACTION AUTHORITY AND
OFFERS THE UNIQUE OPPORTUNITY TO
DEVELOP A CUSTOM PROGRAM TO
SUPPORT TRIBES AND NATIVE
AMERICAN SERVING ORGANIZATIONS
AS THEY WORK TO ADDRESS PREVENT
AND TREAT ADDICTION AND PAIN IN
THEIR COMMUNITIES.
THIS IS AGILE AND FLEXIBLE AND
SHOULD SERVE NATIVE AMERICAN
SERVING ORGANIZATIONS TO RESPOND
TO NEW OR EVOLVING NEEDS IN REAL
TIME.
I WANT TO NOTE THAT ALL FUNDING
IS BY HEAL.
THERE'S INSTITUTES AND CENTERS.
THE PROGRAM MANAGEMENT OF THE
PROGRAM IS AT THE NATIONAL
INSTITUTION ON DRUG ABUSE BUT WE
ARE PARTNERING FOR ADVANCING
TRANSLATIONAL SCIENCES AND
SUPPORT FOR THE REVIEW OF THE
OTHER PROGRAMS.
WE'RE SUPER EXCITE THE OTHER
INSTITUTE CENTERS ALSO SIGNED ON
TO THE PROGRAM.
SIGNING ON IN THIS CASE MEANS
THEY'RE SHOWING A SIGN OF
SUPPORT FOR THE PROGRAM AND
INTEREST SEEING THEIR SCIENCE
REFLECTED IN THE PROGRAM AS
WELL.
JACQUELINE WENT OVER THE
TECHNICAL ASSISTANCE WEBINAR AND
I WANT TO ACKNOWLEDGE I'M
EXCITE.
WE HAVE FIVE PEOPLE AT NIDA
WORKING FULL TIME ON THE
PROGRAM.
IT USED TO JUST BE ME AND NOW
IT'S ME TIMES FIVE AND THAT'S
TREMENDOUS.
I THINK THAT WILL BE LONG
LASTING INFRASTRUCTURE AND
THEY'RE ALL PICTURED HERE.
[LISTING NAMES]
WITH THAT WE WANT TO SAY THANK
YOU VERY MUCH.
I FEAR WE MAY HAVE TALKED FOR
TOO LONG BUT WE REALLY
APPRECIATE YOUR TIME AND
ATTENTION.
[OFF-MIC]
.
>>THE OVER ALL COMMITMENT IS
$268 MILLION OVER THE FIRST TWO
YEARS AND IT'S $25 MILLION FOR
THE ROA AND A LITTLE MONEY FOR
ANCILLARY ACTIVITIES AND I THINK
THAT IMAGINES COMES TO $240
MILLION FOR YEARS THREE THROUGH
SEVEN.
>>WHAT I'M TRYING TO FIGURE OUT
IS YOU SAID YOU'RE NOT GOING TO
PAY FOR PROGRAMMING.
YET THE INFORMATION HAS TO COME
OUT OF PROGRAMMING.
MIGHT EVEN BE NEW PROGRAMMING
BECAUSE WE'RE TRYING NEW THINGS.
HOW DO WE RECONCILE THAT.
>>I DON'T THINK WE CLEARLY
COMMUNICATE HAD.
WE CAN SUPPORT SERVICES IN THE
CONTEXT OF A RESEARCH STUDY.
WHAT WE MEAN IS WE CAN'T SUPPORT
SERVICES IN THE ABSENCE OF A
RESEARCH STUDY BUT CAN SUPPORT
PROGRAMMING IF IT IS FULLY
INTEGRATED INTO A RESEARCH
STUDY.
>>I THINK THAT CLARIFIED IT.
>>THANKS FOR THE EASY QUESTION.
>>I CAME TO THE CONFERENCE
KNOWING WE'LL TALK ABOUT HEAL
AND HOW DO YOU DEAL WITH PAIN
TODAY?
WHAT'S THE -- HOW DO YOU DEAL
WITH PAIN TODAY WITHOUT GOING
DOWN THE ROAD OF NARCOTICS.
SHE SAID TRAMADOL AND STEROIDS.
THAT'S WHAT THEY'RE GIVING THEM
AT E.R. TO GET OUT OF E.R. BUT
LONG TERM IT'S A NOT GOING TO
WORK.
ARE YOU GOING TO BE PULLING OUT
IMMEDIATE DATA AND INFORMATION
SO THOSE OF US NOT PARTICIPATING
IN THE RESEARCH PROJECT START
UNDERSTANDING WHAT MIGHT BE
WORKING AND WHAT MIGHT NOT BE
WORKING?
>>I HOPE WE'LL HAVE THE
OPPORTUNITY TO DO THAT BUT OF
COURSE IT THE AND
NATIVE-AMERICAN ORGANIZATIONS
ARE WILLING TO SHARE THOSE DATA
THEN ABSOLUTELY WE'LL SEE A
CRITICAL NEED TO COMMUNICATE ANY
LESSONS LEARNED AS WE GO ALONG
BUT WE'LL HAVE TO WORK TOGETHER
TO MAKE SURE WE HAVE PERMISSION
TO DO THAT BUT WE'LL WORK FOR
SOLUTIONS FOR DISSEMINATION.
>>THANK YOU FOR THE
PRESENTATION.
THIS IS VERY IMPORTANT WORK THAT
NEEDS TO BE DONE ESPECIALLY
AROUND PAIN MANAGEMENT AND THE
OPIOID RELATED SYSTEM AND WHAT
WE'RE DOING WITH AND WHAT'S
HAPPENING IN OUR COMMUNITY WE
HAD A CLINIC IN OUR COMMUNITY
CALLED NEW BEGINNINGS.
IT'S A CLINIC WHERE AND IT'S
HARM REDUCTION.
A LOT OF TIMES IT'S HARM
REDUCTION AND PEOPLE DON'T
UNDERSTAND IT BUT BUT HAVE YOU
PEOPLE WHO ADDICTED AND IT
STARTED BACK THROUGH HEROIN AND
SO IF THE '70s SOME BECAME
ADDICTED TO HEROIN AND THEY'RE
GOING BACK AND GETTING TREATMENT
FOR THAT AND THEN WE GOT OUR
CLINIC AND NEW DRUGS AND NOW
IT'S LIKE FENTANYL AND THEN IT
WAS AND OPIOIDS AND PAIN
MANAGEMENT AND EVERYTHING THAT
HAPPENED WITH THE OPIOIDS.
THEY WERE TAKING MEDICATIONS
PRESCRIBED TO THEM AND A LOT OF
THEM LOST THEIR JOBS AND LOST A
LOT OF THINGS AND NOW THEY'RE
ADDICTED.
IT JUST CHANGED THEIR WHOLE
LIVES.
THEY SEE THE CLINIC HAS BECOME
SOMETHING DIFFERENT SO WE HELD A
WELLNESS CONFERENCE EVERY YEAR
AND ONE OF THE SURVEYS THAT WE
PUT OUT WAS WHAT IS THE BIGGEST
THING THAT IS AFFECTING YOU?
IT WAS PAIN.
IT WAS PAIN MANAGEMENT AND HOW
DO YOU HANDLE THAT AND IT WAS
THE PAIN.
PEOPLE WERE GOSS TO WHATEVER IT
WAS THEY CAN HANDLE THAT PAIN
THE RESEARCH IS NEEDED.
HOW DO WE DO THAT.
WE TRY TO DO SO MANY THINGS TO
WORK AROUND IT AND WE KNOW IN
OUR TRADITIONAL WAYS THAT THERE
ARE WAYS TO DO IT.
WE HAVE HEAL, WE HAVE MEDICINE,
WE HAVE CEREMONY AND WE KNOW WE
CAN BECAUSE WE'VE DONE IT.
YOU KNOW YOU CAN'T BECAUSE YOU
KNOW YOU CAN'T.
I'LL JUST SAY THAT.
BUT THERE IS A NEED FOR THAT
KIND OF RESEARCH AND FOR US TO
UNDERSTAND WHAT THE COMMUNITY
NEEDS AND FOR US TO HELP OUR
PEOPLE BREAK THAT ADDICTION AND
HELP OUR PEOPLE HEAL.
IT IS SO MUCH NEEDED AND I KNOW
YOU WENT THROUGH THIS QUICKLY
BUT I'M LOOKING FORWARD TO
LOOKING AT THIS A LITTLE BIT
FURTHER AND LOOKING AT HOW THIS
WILL APPLY TO OUR COMMUNITIES
AND I GUESS ONE OF THE QUESTIONS
THAT I HAVE IS LIKE WITH THE
DATA AND THE DATA THAT IT'S
COLLECTING IS -- ARE WE GOING TO
BE USING LIKE OUR OWN PRIMARY
DATA CAN WE USE A SECONDARY DATA
AROUND THE INITIATIVES OR
PROJECTS.
>>SO
>>WE HAVEN'T SPECIFIED THAT.
I COULD MONIMAGINE IT WOULD BE
COMBINATION AS DATA RELEVANT AND
AVAILABLE BUT I THINK THE
TWO-YEAR PLANNING PERIOD WILL
ALLOW THE ORGANIZATIONS TIME TO
IDENTIFY THEIR BEST SOURCES OF
DATA TO UNDERSTAND IF COLLECTION
OF NOVEL DATA IS IMPORTANT TO
BUILD DATA SYSTEMS TO SUPPORT
THE PROGRAMS THAT ARE ALREADY IN
PLACE BUT MAYBE AND THE
COLLECTING THE DATA THAT THEY
THINK ARE IMPORTANT TO POINT TO
SOLUTIONS AND BETTER HIGHLIGHT
WHERE INTERVENTIONS MAY BE MOST
EFFICIENT.
AGAIN, WE REALLY DON'T WANT TO
SPECIFY A LOT IN ADVANCE BECAUSE
WE WANT TO SEE WHAT THE
COMMUNITIES THINK THEY NEED AND
PROVIDE SUPPORT FOR TIME TO
BUILD THAT OUT AND AS DESIRE TO
HAVE SOME PEOPLE WHO HAVE MUCH
DEEPER DATA EXPERTISE THAN I
HAVE, FRANKLY, TO BE ABLE TO
WORK WITH THOSE COMMUNITIES IF
THE COMMUNITIES SO CHOOSE TO
PARTNER WITH OTHERS TO HAVE
IDENTIFY OPPORTUNITIES.
THANK YOU FOR SHARING THE STORY
AND IT'S VERY MUCH OUR HOPE THAT
THIS PROGRAM WILL REALLY WORK TO
SERVE THE NEEDS OF EACH
COMMUNITY WE'RE ABLE TO REACH
AND ALSO THAT WE HAVE THE
OPPORTUNITY TO LOOK AT LESSONS
LEARNED SO THAT IT'S NOT JUST
THE COMMUNITIES WHO GET THE
AWARDS FOR THIS PROGRAM BUT WE
CAN ALSO START TO DISTILL THE
LESSONS AND DISSEMINATE THOSE
OUT MORE BROADLY.
AGAIN, REALLY EXPECTED TO DO
THAT IN PARTNERSHIP AND TAKE OUR
SIGNAL FROM OUR PARTNERS.
>>THANKS SOME OF FOR YOUR
PRESENTATION.
I HAD A QUESTION ABOUT THE
ELIGIBILITY CRITERIA.
YOU MENTIONED IT'S CON
CONGRESSIONALLY APPROPRIATE
FUNDS AND NEEDS TO MEET CRITERIA
AND A TOPIC IS SUBSTANCE ABUSE,
ETCETERA.
ONE OF THE THINGS -- AND I'M
GLAD TO SEE IF THEY MENTION IN
ADDITION TO THE WELLNESS AND
OTHER ASPECTS BUT I WAS
WONDERING IF YOU CAN GIVE A
SENSE, MAYBE YOU DON'T HAVE THE
EXACT STATISTICS BUT GIVE A
SENSE FOR HOW MANY ARE FOCUSSING
ON WELLNESS OR RESILIENCE IN
ADDITION TO THE ILLNESS MODEL.
THANKS.
>>SO I WANT TO CLARIFY THAT
RIGHT NOW THE RESEARCH
OPPORTUNITY ANNOUNCEMENTS ARE
OPEN AND ON THE STREET AND
APPLICATIONS ARE DUE ON NOVEMBER
1.
SO WE DON'T HAVE ANY AWARDED
PROGRAMS YET SO I CAN'T DESCRIBE
WHAT'S ALREADY IN THE FIELD
BECAUSE WE'RE NOT IN THE FIELD
YET.
HAVING WORKED IN THIS SPACE FOR
A VERY LONG TIME I WOULD THERE
WOULD BE AN EXTREME EMPHASIS ON
STRENGTH-BASED FACTORS AND
WELLNESS.
WE HAVE HEARD FROM TRIBAL
LEADERS AND COMMUNITIES THAT
IT'S VERY IMPORTANT TO LOOK AT
THAT AS WELL AND GOSH, I COULD
GO ON ABOUT THAT FOREVER.
FOR EXAMPLE, DR. MELISSA WELLS
OFTEN SHOWS DATA TO SAY WHEN WE
LOOK FOR DEFICITS, WE FIND
DEFICITS BUT THEN WHEN WE ALSO
LOOK FOR STRENGTHS, OFTEN TIMES
THE STRENGTHS -- THEY'RE OFF THE
CHARTS.
MENTAL FLOURISHING IS OFF THE
CHARTS BENEVOLENT PARENTING
EXPERIENCES, ALL KINDS OF GREAT
THINGS GOING ON SO IF WE ONLY
LOOK FOR THOSE DEFICITS WELL SEE
THEM.
SO SCIENTIFICALLY, I BELIEVE
IT'S IMPORTANT TO HAVE THAT
BALANCE BUT I WILL NOT DIGRESS
LEST I GO WAY OFF TRACK.
>>AND THANKS FOR CLARIFYING.
AS A FOLLOW-UP IS THERE A WAY
YOU CAN PRIORITIZE WITHIN THE
EXISTING ANNOUNCEMENT FOR THOSE
THAT MENTION WELLNESS,
RESILIENCE AND THE OTHER
STRENGTH BASES IN ADDITION TO
THE TOPICS REQUIRED.
>>THE WAY I WOULD ANSWER THAT
IS WE'LL BE RELYING ON OBJECTIVE
REVIEW AND WE WILL MAKE SURE THE
REVIEWERS OF THE APPLICATIONS
HAVE A STRONG UNDERSTANDING OF
NATIVE COMMUNITIES AND AND WE'LL
BE LOOKING AT THOSE THINGS.
I CAN'T SAY FOR SURE THAT BUT
YOU WOULD THINK THAT THAT WOULD
BE IMPORTANT.
>>I WANT TO THANK YOU -- YE,
ONE LAST QUESTION, I GUESS.
THESE ARE SOME PRETTY QUICK
MOVING TIME FRAMES.
UNLESS YOU HAVE LIKE SOME
PROGRAMMING ALREADY IN PLACE I
DON'T THINK THERE'S TIME FOR
TRIBE ORGANIZATIONS OR TRIBES
THAT DON'T HAVE SOME OF THESE
SYSTEMS IN PLACE TO GET THINGS
UP AND RUNNING FAST ENOUGH TO
EVEN APPLY.
TYPICALLY, SO WHEN YOU TALKED
ABOUT METHADONE, WHEN YOU'RE
TRYING TO DEAL WITH PEOPLE AND
NARCOTICS, IF METHADONE ISN'T A
TREATMENT MODALITY IN YOUR
SYSTEM, YOU'RE NOT GOING TO BE
ABLE TO DEAL WITH THOSE HUGE
CRAVING ISSUES YOU HAVE AND IT
TAKES A YEAR OR TWO JUST TO BE
ABLE TO GET AUTHORIZATION TO
EVEN INCORPORATE THAT INTO THAT.
ARE YOU GOING TO -- IF SOMEBODY
COMES IN AND SAYS I WANT TO
START SOMETHING UP, IT'S GOING
TO BE A YEAR OR TWO OR TWO YEARS
DOWN THE ROAD, IT MAY BE LONGER
BEFORE THEY CAN GET THEIR SYSTEM
UP AND RUNNING.
ARE YOU GOING TO HAVE SOME WAY
OF TRYING TO FACILITATE A FAST
TRACK TO HELP THEM OUT BECAUSE
THAT'S ONE OF THE BARRIERS RIGHT
NOW OF SOME OF THE TRIBES
PUTTING SOME OF THE PROGRAMS IN
PLACE.
>>YEAH, SO THE WAY I CAN
RESPOND TO THAT IS THAT THE
RESEARCH APPLICATIONS OR ROAs
STIPULATE IN THE APPLICATIONS WE
WANT PEOPLE TO SUBMIT THEIR
RESEARCH QUESTIONS.
AND SO I WOULD ENCOURAGE YOU TO
READ THE ROAs AND CONSIDER WHAT
COULD BE SUBMITTED THAT COULD
POTENTIALLY SUPPORT YOUR
LONG-TERM VISION.
AGAIN, THIS IS NOT A TRADITIONAL
APPLICATION AND THERE IS THE
TWO-YEAR PLANNING PERIOD
WHETHER -- HOW IT ALL PLAYS OUT
REMAINS TO BE SEEN.
I CAN'T SPECIFICALLY SAY THAT
YES, THERE WOULD BE TIME TO
DEVELOP A NEW PROGRAM FULL CLOTH
BUT WE WANT TO ENCOURAGE
EVERYBODY TO APPLY AND APPLY
WITH YOUR RESEARCH QUESTIONS AND
THAT'S WHAT THE TWO-YEAR
PLANNING AND DEVELOPMENT IS FOR
AND WHAT WORKING IN PARTNERSHIP
IS FOR AND THE REST IS YET TO BE
SEEN.
>>A POINT OF CLARIFICATION, SO
THIS IS UNUSUAL BECAUSE IT'S
REALLY ALLOWING FOR PEOPLE NOT
TO HAVE FULLY DEVELOPED IDEAS
OTHER THAN GENERAL RESEARCH
QUESTIONS AND THEN GIVES TWO
YEARS FOR PLANNING AT THE LOCAL
COMMUNITY LEVEL.
THAT'S TO COME UP WHAT GOING TO
HAPPEN AND THAT'S PRETTY UNUSUAL
AT THE NIH.
I WANT TO ACKNOWLEDGE THE
TWO-YEAR PERIOD AND IT'S NOT A
COMPLETE PROJECT SO.
I WANT TO THANK YOU BOTH FOR
PRESENTING AND SHARING THIS
INFORMATION TODAY AND I KNOW
YOU'LL BE AROUND AND IF THERE'S
MORE QUESTIONS THEY CAN PULL YOU
ASIDE AND BEND YOUR EAR A LITTLE
BIT.
BUT THANK YOU SO MUCH.
IT'S TIME FOR US TO BREAK FOR
LUNCH.
SO, DO YOU WANT TO MAKE ANY
ANNOUNCEMENTS HOW WE'LL PROCEED
WITH LUNCH?
>>WE'RE ABOUT TO BEGIN OUR
AMERICAN INDIAN INNOVATIONS AND
SHARE EXPERIENCES WITH THE TAC.
IT'S THE FIRST TIME TO MY
UNDERSTANDING IT'S BEEN DONE.
I THINK IT'S IMPORTANT YOU CA
CAN HEAR WHAT'S BEEN GOING AND
TRIED TO GET REPRESENTATION
AROUND THE COUNTRY AND HOPEFULLY
IT'S ONE OPPORTUNITY TO DO THIS
NOTICE FUTURE.
FIRST UP IS DR. LORENDA BELONE
FROM THE UNIVERSITY OF NEW
MEXICO.
YAY.
>>LOS LOBOS.
>>SHE WAS RECENTLY PROMOTED TO
FULL PROFESSOR.
SHE HAS BEEN ENGAGED IN
COMMUNITY-ENGAGED PARTICIPATORY
RESEARCH FOCUSSED ON TRIBAL
INITIATIVES AND HER FIRST R01
STUDY WAS ON THE EXAMINATION OF
THE FAMILY LISTENING PROGRAM
WITH THREE SOUTHWEST TRIBAL
NATIONS AND IN 2020 SHE RESO
RESOURCE -- RESOUCEIVED AN NIH .
FEW HAVE ACHIEVED THIS GOLD
STANDARD OF AN R01 AT THE NIH SO
YOU'RE AMONG THE FEW BUT WE NEED
MORE.
I'M EXCITED AND ALSO GETTING
PROMOTED I WAS JUST SHARING WITH
HER LESS THAN .05% IN THE
COUNTRY ARE FULL PROFESSORS IN
THE COUNTRY.
I'M SORRY YOU'RE STANDING ALONE
IN SOME WAYS BUT YOU'RE BREAKING
GROUND AND EXCITED TO HEAR YOUR
RESEARCH.
>>THANK YOU FOR THAT.
WELCOME AND THANK YOU FOR THE
INVITE.
I'M HAPPY TO BE HERE.
THANK YOU FOR THE WELCOME.
I'M GOING TO SHARE 13 YEARS OF
WORK IN 20 MINUTES.
I'M GOING TO BE INFORMAL AND I'M
NOT USED TO HEARING MY VOICE SO
FIRST OF ALL, I AM NAVAJO.
[SPEAKING NON-ENGLISH]
JUST A QUICK SNAPSHOT OF ME IN
THE COMMUNITY WE STILL RAISE
SHEEP, WE SHEER.
BECAUSE OF TRAVEL WE SHEERED IN
JULY.
THEY'LL BE FREEZING COME
NOVEMBER AND DECEMBER.
IT'S A QUICK SNAPSHOT OF WHO I
AM IN MY COMMUNITY AND WHO I AM
IN MY COMMUNITY I WAS TELLING
NUMBERS ARE LOW BECAUSE WE
USUALLY DON'T WANT TO BE THERE.
IT'S A HARD PLACE TO BE, TO BE
IN THE ACADEMY.
I WORKED FOR 10 YEARS WITH AN
UNDER GRADUATE DEGREE AND
SPURRED ME TO SEEK A MASTER'S
PROGRAM AND I WAS SITTING AT
RESEARCH TABLES AND I WOULD TALK
BUT WOULDN'T BE UNDERSTOOD.
I DIDN'T HAVE THE VOCABULARY OR
GROUNDING TO BE ABLE TO ADD TO
THE DISCUSSION.
BUT SOMEONE WHO HAS A DEGREE
WOULD SAY SOMETHING I SAID BUT
USE A DIFFERENT VOCABULARY AND
IT WOULD BE LIKE, OH, I JUST
SAID THAT.
SO IT PROMPTED FOR ME TO BE MORE
ENGAGED AT THE RESEARCH TABLE.
I NEEDED MORE THAN THAT I'M EYE
CBPR RESEARCHER AND DO RESEARCH
CULTURALLY CENTERED.
I'M IN HEALTH COMMUNICATION AND
HAVE A MASTER'S IN HEALTH WITH A
BACKGROUND IN EPIDEMIOLOGY.
UNDERLYING ALL OF THAT BEING A
NAVAJO WOMAN AND BEING STRESSED
ON ME EDUCATION AND IN THE
ACADEMY AGAIN TO USING
VOCABULARY AND THAT'S CBPR, IF
YOU'RE ENGAGED IN RESEARCH AND
YOU ARE A CBPR RESEARCHER IT'S
COLLABORATING WITH THE
COMMUNITY.
IT'S IN EVERY STEP OF THE
RESEARCH PROCESS.
THESE ARE THE STEPS WHEN YOU ARE
DOING HEALTH RESEARCH.
IT MEANS COLLABORATING IN EVERY
STEP OF THAT PROCESS NOT JUST
DATA COLLECTION.
IT'S DESIGNING AND IDENTIFYING
WHAT IS THE RESEARCH QUESTION?
AND IT'S NOT RESEARCH ON OR FOR
BUT RESEARCH WITH.
SO I WAS ABLE TO STAY IN THE
ACADEMY BECAUSE I'M A CBPR
RESEARCHER AND THIS WILL BE THE
APPROACH I'M GOING TO USE.
AND AS A CBPR RESEARCHER I'LL
RESPECT TRIBAL SYSTEMS AND HONOR
THEM BECAUSE THAT'S HOW I WAS
RAISED.
I'LL GO TO GOVERNMENTS AND GET
APPROVAL.
-- I'LL GO TO TRIBAL GOVERNMENTS
AND GET APPROVAL.
THE DATA DOESN'T BELONG TO ME,
IT BELONG TO THEM.
SOME PRINCIPALS I HAVE TO
ARTICULATE TO DO THIS WORK CAN
BE ACADEMY.
SO MY JOURNEY OVER 23 YEARS AS A
GRAD STUDENT AND AGAIN AFTER
RECEIVING MY UNDERGRADUATE
DEGREE I WORKED FOR MY TRIBE FOR
10 YEARS.
I DIDN'T GO TO GRADUATE SCHOOL
UNTIL I WAS ABOUT 36.
SO I HAVE A LATER START.
AND THESE ARE SOME OF THE
RESEARCH PROJECTS I'VE BEEN ABLE
TO BE INVOLVED IN AND
NEGOTIATED.
SO I'M A NARCH RECIPIENT AND
GRADUATE.
SO HOW DO I USE RESEARCH AND BE
OF SERVICE TO MY COMMUNITY.
THIS IS MY JOURNEY IN HOW I'VE
BEEN ABLE TO DO THAT.
AS A GRADUATE STUDENT THE CDC
WAS INTERESTED IN WHAT IS SOCIAL
CAPITAL.
>>THERE WAS UNDERSTANDING OF
MAINSTREAM AMERICA BUT NOT WHAT
I MEANT IN COMMUNITIES OF COLOR.
THE CDC HAD AN OPPORTUNITY AND
FUNDED SIX SITES ACROSS THE
COUNTRY SUCH AS THE BLACK
COMMUNITY AND THE BOOT HILLS OF
THE COMMUNITY AND NEW YORK AND
CHINA TOWN AND THE COMMUNITY OF
RESEARCHERS THERE.
AND TWO PARTNERS IN NATURAL.
AND THE CDC FUNDED THE STUDY AND
IT WAS QUALITATIVE AND AS A
RESEARCHER WE COLLECT DATA TWO
WAYS, QUALITATIVE AND
QUANTITATIVE APPROACH.
QUALITATIVE WE'RE INTERESTED IN
YOUR WORDS AND STORIES.
IF I HAD A CUP OF COFFEE AND
ASKED YOU, USE YOUR WORDS YOU
WOULD THEN TELL ME IT'S A BLACK
CUP OF COFFEE.
FOR ME I LOVE BLACK COFFEE.
NO CREAM, NO SUGAR.
BUT FOR SOME YOU'D SAY IT WILL
NEED CREAM OR SUGAR.
IT DEPENDS ON YOUR EXPERIENCES
QUALITATIVE IS YOUR WORDS AND
EXPERIENCES.
QUANTITATIVE IF WE
QUANTITATIVELY LOOKED AT THE CUP
OF COFFEE IT'S ONE CUP FOR ALL
OF US.
AND IT'S EIGHT OUNCES.
WE COULD ALL MEASURE EIGHT
OUNCES.
IT'S A CERTAIN TEMPERATURE.
SO THAT WOULD BE HOW YOU WOULD
UNDERSTAND QUALITATIVE AND
QUANTITATIVE.
SO OUR STUDY WAS QUALITATIVE.
IT WAS BASED ON EXPERIENCE.
SO WHAT WE WERE HEARING EARLY ON
PARTICULARLY FOR OUR PUEBLO
COMMUNITY IS THERE WERE CONCERNS
THEIR HEADSTART KIDS WERE COMING
IN AND THEY WERE STARTING TO SEE
THE LOSS OF LANGUAGE IN A
COMMUNITY WITH A HIGH LANGUAGE
USE.
THEY WERE SEEING LOSS OF
COMMUNICATION BETWEEN YOUTH AND
ELDERS.
SO WE TOOK QUALITATIVE RESULTS
AND FINDINGS AND LOOKED AT NARCH
1 AND TURNED IT INTO
QUANTITATIVE.
WE WERE ABLE TO QUANTITATIVELY
FURTHER INVESTIGATE SOCIAL
CAPITAL OR IN THIS CASE WE WERE
LOOKING AT COMMUNITY CAPACITY.
WE QUANTITATIVELY COLLECTED THE
ISSUES AND HEARD THE SAME THING,
THE NEED TO IMPROVE
COMMUNICATION BETWEEN PARENTS
AND YOUTH AND THE ISSUES AROUND
SUBSTANCE USE AND INITIATION OF
USE.
WHAT DO YOU DO WITH THAT?
HOW DO YOU BE RESPONSIVE TO THE
COMMUNITY?
WE DID A LITERATURE REVIEW AND
SAID WHO'S DOING ON WORK ON THE
ISSUES CURRENTLY AND AT THE
UNIVERSITY OF NEBRASKA THEY
RECENTLY RETIRED WAS DOING WORK
AND HE HEARD THE SAME THING, LES
HAD TOLD US ONE OF THE ELDERS
SAID, HEY, YOU'RE SMART, LES.
THESE ARE OUR ISSUES.
DO SOMETHING ABOUT IT FROM WHAT
YOU CAN DO AS A RESEARCHER.
HE LOOKED AT THE LITERATURE AND
FOUND A MAINSTREAM PROGRAM AND
THEN HE ADAPTED IT WITH OJIBWE
AND WE BROUGHT HIM DOWN AND WE
SHARED HIS WORK WITH OUR
PARTNERS AND WENT AFTER NARCH
III AND WE SAID WE'LL TAKE WHAT
LESS FOUND AND ADAPT IT.
BEING RESPONSIVE TO THE
COMMUNITY, DESIGNING THE
RESEARCH QUESTION AND WE SAID
WE'RE GOING TO DO CBPR AND LOOK
AT THE ADAPTIVENESS OF
INTERVENTION AND TARGETING
THIRD, FOURTH, FIFTH GRADERS
BASED ON LES' RECOMMENDATIONS.
USING CBPR SO WHEN YOU WRITE
YOUR METHODS YOU'RE TAUGHT WHAT
ARE THE METHODS.
THE METHODS FOR A FOCUS GROUP --
WHO WANTS TO SHARE METHODS FOR A
FOCUS GROUP?
HOW YOU RECRUIT AND CONDUCTED
AND WHO IS ASKING THE QUESTION.
AND WE HAVE OUR COMMUNITY
ADVISORY BOARD TO BE THE
FACILITATORS, WELL, TO
CULTURALLY CENTER A GATHERING
THEY INVITE THE PARTICIPANTS --
THEY DIDN'T DO A SNOWBALL
EFFECT.
WE DID A NUMBER OF FOCUS GROUPS
FOR THE ONE I'M GOING SHARE IS
AN ELDER FOCUS GROUP AND THEY
DESIGNATE THE DATE AND TIME AND
LOCATION.
I'M A GRAD STUDENT DRIVING TWO
AND A HALF HOURS WEST OF THE
UNIVERSITY AND I'M THERE, IT'S A
NAVAJO GROUP.
I'M ABLE TO SIT BACK AND LISTEN
BECAUSE THEY'RE FACILITATING --
NOT ME, I'M NOT RUNNING IT.
AND ONE OF THE FACILITATORS HAD
DROWN THE HOUSE OF THE MAHOGAN
AND ASKED THE ELDERS, CAN YOU
TELL US ABOUT THE RESEARCH
QUESTION.
HE DIDN'T TELL HE SAID HERE'S A
PICTURE OF A HOME WHAT ARE THE
THINGS WE'RE NOT TEACHING OUR
KIDS WE NEED TO TEACH THEM AT
HOME?
THAT'S HOW WE STARTED THE FOCUS
GROUP.
IT WASN'T A QUESTION OR COMMENT
AND WASN'T WE'RE GOING TO
QUALITATIVELY LOOK AT THIS.
IN THE APPROPRIATE WAYS OF
HANDLING THIS WAS HE OPENED IT
UP TO THE GROUP AND WE WERE
SITTING IN A CIRCLE AND THE
APPROPRIATE WAY IS WHOEVER
SPEAKS THEY START THE
DISCUSSION.
AND THEY CAN SPEAK FIVE MINUTES,
30 MINUTES, AN HOUR, TWO HOURS.
I WOULD WOULD HAVE BROKE
PROTOCOL AND THERE ARE
APPROPRIATE WAYS ONCE THE
SPEAKER IS DONE THEN WE GO
CLOCKWISE.
THEN THE PERSON WHOEVER THEY MAY
BE CLOCKWISE WOULD THEN SPEAK
AND THEN GIVEN THE PROPER TIME.
AFTER A COUPLE HOURS AND WE'RE
AGAIN CLOSE TO NOON AND I'M
SITTING THERE AND HAVE CLASS TO
GET TO AND THEY SAID, WE HAVE A
MEAL IT'S NOT A MEAL BUT A
SANDWICH AND THE PROTOCOL IS YOU
SIT AND DISCUSS THE MEAL YOU
DON'T HAVE A MEETING AND DO
BUSINESS.
ANOTHER HOUR OF A FULL MEAL, NOT
A SANDWICH.
HERE WE ARE, SO NO TIME
CONSTRAINTS AND THE APPROPRIATE
WAYS OF COMMUNICATING.
AND AS WE GET LATER IN THE
AFTERNOON THEY DECIDE, OKAY,
THIS IS WHERE WE'RE GOING TO
STOP.
WE DIDN'T FINISH GOING AROUND
THE TABLE.
THERE'S A POLICE OFFICER SITTING
THERE AND GOING LIKE THIS TO ME.
WE HADN'T GOTTEN TO HIM YET AND
BASICALLY TOLD ME I'LL WAIT
UNTIL YOU COME BACK TO SHARE
WHAT I WANTED TO SHARE AND
PROTOCOL FOR FOCUS GROUPS IS YOU
DON'T GO BACK TO THE SAME GROUP
AND THEY DO ONE FOCUS GROUP AND
THE INCENTIVE I THANK THEM FOR
COMING AND I HAVE TO GO BACK AND
TELL THE PRINCIPAL INVESTIGATOR,
I NEED AN INCENTIVE AND WE'RE
CULTURALLY CENTERING AND WHAT WE
WERE ABLE TO GLEAN WAS AMAZING.
WE WERE ABLE IN THE NARCH III TO
DEVELOP TWO PROGRAMS.
HERE ARE THEIR SESSIONS.
AND IN NEW MEXICO MY PATCH OF
COLLEAGUES SAID, HEY, I HEAR
WHAT YOU'RE DOING OVER THERE.
COME TO US.
WE GET AN NARCH V.
WE COULD AN APACHE VERSION WITH
OUR FOLKS DOWN THERE.
MY PARTNERS UP NORTH AND NAVAJO
COMMUNITIES TO THE WEST AND DOWN
IS THE APATCHY GROUP THERE'S TWO
APACHE AND ONE NAVAJO COMMUNITY.
SO THIS WORK AGAIN CBPR I WAS
TOLD FIVE MINUTES I DIDN'T GET
THROUGH MY SLIDES.
ALL RIGHT, THIS WORK ISN'T DONE
ALONE.
THESE ARE MY PARTNERS.
THESE THREE COMMUNITIES HAVE
BEEN INVOLVED IN MULTIPLE
COMMUNITY STUDIES AND CALLED
TRIBAL RESEARCH TEAMS BECAUSE
THEY HAVE THE CAPACITY AND
KNOWLEDGE TO BE ABLE TO DO THAT.
SO WE ROLLED OUR WORK WITH THE
THREE AND DID AN R01 WE
RIGOROUSLY TEST THE INTERVENTION
AND I'M WRITING THAT PAPER RIGHT
NOW.
WE DID AN INTERVENTION GROUP AND
COMPARISON GROUP.
THEY DID FIVE WAVES OF THAT
STU
STUDY THIS IS EACH WAVE LOOKED
LIKE AND GOING TO THE
UNIVERSITY'S IRB AND TWO TRIBAL
IRBs AND TRAINING, RECRUITMENT,
DATA COLLECTION, IMPLEMENTATION,
DATA COLLECTION AND START ALL
OVER EACH YEAR.
THERE'S A DINNER AND HERE'S
PICTURES OF THE COMMUNITIES AND
TRIBAL FACILITATORS AND TEAM
RUNNING THE PROGRAM.
THESE ARE TOPICS FOR EACH OF THE
SESSIONS.
THE CURRENT STUDY WE SAY AND
THIS IS AN EVIDENCE-BASED
PROGRAM.
SO OUR NEXT STUDY IS AN
IMPLEMENTATION SCIENCE STUDY.
AND IMPLEMENTATION SCIENCE IS
USE OF STRATEGIES USED TO
IMPLEMENT AND SUSTAIN
EVIDENCE-BASED COMMUNITY
SETTINGS.
THIS WAS THE VISION OF THE
TRIBAL TEAMS WAY BACK.
THEY SAID WE GET SAMHSA DOLLARS
AND THEY SAID RUN THE PROGRAM
BUT THEY CAN'T CHANGE ANYTHING.
THEY CAN'T ADAPT IT OR CHANGE
THE MEASURES.
IN OUR STUDY WE WERE ABLE TO DO
THAT.
WE SAID, OKAY, OUR THREE TRIBAL
TEAMS, YOU'LL BECOME THE COACHES
IN THE STUDY AND WE'LL TRAIN
THREE NEW TRIBAL PARTNERS.
THIS IS MY THREE LONG STANDING
PARTNERS AND THREE NEW TRIBAL
PARTNERS.
THIS IS THE STUDY IN HERE AND
THOUGH I HOPE I SEE MY PROJECT
OFFICER WE'RE STUCK HERE.
WE'RE NOT ABLE TO DO ANYTHING.
EACH OF THE COMMUNITIES ARE
ADAPTING THE PROGRAM TO THEIR
COMMUNITY WE DID THIS RIVER OF
LIFE ACTIVITY.
FOR THIS COMMUNITY THEY WERE
RELOCATE FROM THE DISPUTE.
THE FOLKS IN THIS COMMUNITY OF
NAVAJO-HOPI AND COME FROM OVER
22 NAVAJO CHAPTERS.
THEIR HISTORY ISN'T WRITTEN.
HOW DO THEY TALK ABOUT THEIR
HISTORY TO THE FOURTH AND FIFTH
GRADERS.
THIS WAS A RIVER OF LIFE
ACTIVITY TO BEGIN TO TEACH THAT.
AND JUST TALKING ABOUT IT IS
HEALING.
THIS IS WHAT THEIR HISTORY IS
STARTING TO LOOK LIKE AS THEY
SHARE THE IMPORTANT TIME LINES
AND BRING THE COACHES TO THE NEW
COMMUNITIES.
AND I WAS KNOCKING ON DOORS AND
TALKING WITH FOLKS BUT STILL
GETTING THE PUSHBACK BECAUSE
IT'S RESEARCH.
WHEN WE HAD THE MEETING AND THE
THREE NEW COMMUNITIES HEARD THE
TRIBAL FOLKS TALK, THEY SAID I
WANT TO BUY ONE.
WHATEVER YOUR SELLING I'LL BUY
IT BECAUSE THEY WERE SELLING
THEIR EXPERIENCE AND RUNNING
THEIR OWN PROGRAM.
THAT WAS LIKE OVERNIGHT.
AND THE COMMUNITY HAVE A PROGRAM
IN ALBUQUERQUE AND THOSE ARE
FAMILIES ALL RIGHT PRESENTING ON
THEIR HISTORY, SHARING WITH
FOURTH AND FIFTH GRADERS.
AND THIS IS MY IMPLEMENTATION
STUDY, IRB PACKAGING.
THEY'RE ADAPTING AND DEVELOPING
THEIR OWN INTERVENTION AND LOOK
AT MEASURES WE'RE COLLECTING AND
THEIR OPPORTUNITY TO WRITE THE
CONSENT FORMS.
AND I'VE BEEN USING THE HARVARD
CATALYST TRAINING WHICH TRAINS
COMMUNITIES TO BE CD
CERTIFICATION.
THEY'RE GETTING CERTIFICATION SO
WHEN THEY'RE READY TO IMPLEMENT
IN THEIR COMMUNITIES THEY CAN DO
IT AND HAVE THE CERTIFICATION TO
BE ABLE TO COLLECT.
AND WE'LL HOLD FOR QUESTIONS.
>>THANK YOU, WE'RE GOING TO
GIVE FULL QUESTIONS AFTER ALL
PANELISTS HAVE HAD THE
OPPORTUNITY TO SHARE.
I APOLOGIZE FOR THE TIME FRAME.
TRYING TO HONOR EVERYBODY'S TIME
AND RECOGNIZING THAT IN OUR
COMMUNITIES WE HAVE PROTOCOLS
THAT ARE A LITTLE BIT DIFFERENT.
NEXT UP IS LISA SOCKBASIN FROM
THE PASSAMAQUODDY TRIBE AND PART
OF THE WABANAKI PUBLIC HEALTH
AND WELLNESS AND COLLABORATES
WITH FEDERAL LEADERS AND
AGENCIES AND PHILANTHROPIC
ORGANIZATIONS AND LOVES
IMPLEMENTING CULTURALLY-BASED
PROGRAMS.
WELCOME, LISA.
>>AGAIN, I'M LISA SOCKBASIN A
PAST PASSAMAQUODDY NATION AND
FROM THE MAINE WABANAKI
TERRITORY.
I'M GOING SPEND TIME TALKING
ABOUT FIRST WHO WE ARE AS
WABANAKI PEOPLE.
I KNOW WE HAVE AFTER LEAST ONE
OTHER WABANAKI PERSON IN THE
ROOM AND IF WE HAVE OTHERS,
HELLO.
FIRST, WHERE ARE WE?
THE WABANAKI PEOPLE TRANSLATES
TO THE PEOPLE WHO GREET THE
FIRST LIGHT OR THE PEOPLE OF THE
DAWN LAND.
THE PEOPLE WHO GREET AND WELCOME
THE SUN UP FOR THE REST OF
TURTLE ISLAND.
WE TAKE THAT RESPONSIBILITY
EVERY SINGLE DAY.
THE MIKMAQ ARE THE PEOPLE OF THE
WABANAKI.
YOU CAN SEE AN OUTLINE OF MAINE
WHAT IS NOW CALLED MAINE WHERE
THE DOTTED LINE IS RIGHT HERE.
THE LINE HAS HAD UNFORTUNATE
DEVASTATING EFFECTS IN OUR
CONNECTIONS WITH OUR PEOPLE
ACROSS THE BORDER.
OUR CEREMONIES OUR LANGUAGE AND
THE RESTORATION THEREOF.
IT'S HAD DEVASTATING AFFECTS ON
OUR NUMBERS.
WE ARE SMALL TRIBES.
SMALLPOX HAS A HISTORY FOR OUR
COMMUNITIES.
IT'S HAD IMPACTS ON OUR HEALTH
STATUS TODAY.
SOME OF OUR TRIBE'S LIFE
EXPECTANCY IS IN THE 50s.
WE HAVE HALF OF OUR TRIBAL
CHILDREN NOT GRADUATING HIGH
SCHOOL.
AND THE LIST GOES ON IN TERMS OF
SOME OF THOSE DISPARITIES BUT
STRENGTH OF WABANAKI PEOPLE IS
WHERE I WANT TO FOCUS.
WE HAVE BEEN THE RESEARCHERS AND
THE STEWARDS OF OUR LAND AND
KEEPING OUR LAND PROTECTED FOR
THOUSANDS OF YEARS.
ALONG WITH WABANAKI HEALTH AND
WELLNESS AND THE PAST
PASSAMAQUODDY NATION HAVING TWO
RESERVES AND THE FRESH WATER
PEOPLE, WHERE I'M FROM AND THE
SALT WATER PEOPLE WHO HAD THEIR
HOME BESIDE THE ATLANTIC OCEAN.
AND I JOINED THE ORGANIZATION
FIVE YEARS AGO.
AT THAT TIME WE WERE LESS THAN A
DOZEN PEOPLE FIVE YEARS AGO AND
QUICKLY GREW TO OVER 212 PEOPLE
NOW AND WHAT WE SAY AT WABANAKI
HEALTH AND WELLNESS, WHEREVER
YOU ARE IN YOUR JOURNEY, WE HAVE
A PLACE FOR YOU.
WE WANTED TO MAKE SURE
INDIGENOUS PEOPLE DID NOT FORGET
OUR INDIGENOUS PEOPLE STRUGGLING
THE MOST.
STRUGGLING THE MOST WITH
SUBSTANCE USE DISORDERS,
POVERTY, TRAUMA AND THE AFFECTS
OF TRAUMA AND WE WANTED TO HOLD
PEOPLE NO MATTER WHAT.
THAT WAS OUR GOAL AND I THINK
THAT'S WHAT ALLOWED US TO GROW
TO THE FOUR CENTERS, SOON TO BE
FIVE.
THE CENTER OF WABANAKI PUBLIC
HEALTH IS WHERE YOUR BASIC
PROGRAMMING HAPPENS, THE TRIBAL
HOME HEALTH VISITING WORK AND
VIOLENCE PREVENTION AND ALSO OUR
CULTURE LANGUAGE AND EDUCATIONAL
WORK AND THIS IS WHERE OUR
DIRECT SERVICES HAPPEN.
AND THERE'S SERVICES AND HARM
REDUCTION AND WE'RE CONNECTED.
THE CENTER FOR WABANAKI HEALING
AND RECOVERY AND THIS IS WHERE
EXPANSION GREW THE MOST ABOUT
ADDRESSING OUR ISSUES RELATED TO
TRAUMA AND SUBSTANCE USE
DISORDER.
SOON WE'LL BE ADDING DETOX ON
THE LIST OR MEDICATION-ASSISTED
WITHDRAWAL.
AND WHEN OUR PEOPLE WERE READY
FOR DETOX AND THERE WAS NO PLACE
TO SEND THEM FOR DETOX WE MAY
NOT FIND THEM AGAIN.
-- WHEN THERE WAS A BED.
AND WHEN THEY WENT TO
NON-INDIGENOUS SERVICES FOR
DETOX SOMETIMES THOSE PLACES
WERE TOO HARD.
WE ARE THE WHITEST OLDEST STATE
IN THE NATION AND IT'S A HARD
PLACE TO BE.
OFTEN TIMES FOR INDIGENOUS
PEOPLE.
MAKING SURE WE'RE CREATING
CULTURALLY CENTERED PROGRAMMING
FOR INDIGENOUS PEOPLE EVERYWHERE
IS WHAT WE NEED FOR HEALING.
LASTLY, THE CENTER FOR WABANAKI
RESEARCH KNOWLEDGE AND
INNOVATION IS WHAT I'M HERE TO
TALK ABOUT TODAY.
WE'RE NOT 25 YEARS OF WORK.
THAT'S AMAZING.
WE'RE ONLY A FEW YEARS OF WORK.
THIS IS OUR ORGANIZATIONAL CHART
AND OUR TRIBAL LEADERSHIP ISN'T
THIS A BEAUTIFUL ORGANIZATIONAL
CHART.
NOT MANY PLACES CAN SAY THAT.
HERE ARE OUR CURRENT EFFORTS.
MARCH, WHICH IS AMAZING IT'S
BEEN THE GRANT THAT HAS REALLY
LET US CREATE THIS NEW CENTER IN
OUR ORGANIZATION.
CREATE A NEW RELATIONSHIP IN
RESEARCH FOR OUR COMMUNITY
MEMBERS.
RESEARCH IS NOW BECOMING A WORD
THEY'RE GETTING EXCITED ABOUT
RATHER THAN RUNNING FROM AND THE
VOICES OF OUR ELDERS I'LL TALK
ABOUT IN A SECOND AND CREATING A
RESEARCH REVIEW BOARD.
WE'VE NEVER HAD ONE.
HEALTH ACCREDITATION IS COMING
DOWN THE ROAD AND BUILDING THE
INFRASTRUCTURE TO HOLD THE
REQUIREMENTS AS SOMETHING
ONGOING.
WE'RE COMPLETELY INVISIBLE IN
OUR DATA SETS.
IN A STATE THAT IS 96%, 97%
WHITE YOU CAN IMAGINE THE SMALL
POPULATIONS BECOME.
-- ERASED.
WHAT DOES THAT DO FOR OUR
ABILITY TO GROW OUR
INFRASTRUCTURE AND SERVE OUR
PEOPLE LET ALONE HAVE A VOICE
AND WHERE BUDGETS ARE MADE?
AND OUR NEEDS ASSESSMENT IS WORK
TO MAKE US VISIBLE.
AND BUILDING THE NEXT GENERATION
OF RESEARCHERS IS A BIG FOCUS OF
OUR WORK.
AND THE WAY THEY THINK AND THE
RELATIONS THEY HAVE ARE ALL
GIFTS ANY RESEARCHER WORKS THEIR
CAREER TO HAVE THAT LEVEL OF
DEPTH.
SO OUR INTERNSHIP PROGRAMS IS
SOMETHING THAT WE WANT TO EXPAND
UPON AND GOING ABOUT FOR 36
MONTHS.
THIS WAS A FOUR-YEAR GRANT TO
ESTABLISH A FEW DIFFERENT THINGS
THAT RESEARCH PROJECT THE VOICES
OF OUR ELDERS BEING ONE AND
CAPACITY BUILDING AROUND OUR
YOUNG PEOPLE AS WELL AS A
CREDITATION.
-- ACCREDITATION.
THE VOICES OF OUR ELDERS IS A
STUDY LOOKING AT ELDERS,
POSITIVE BRAIN HEALTH IN OUR
ELDERS.
WE WANTED TO MAKE SURE THE FIRST
RESEARCH PROJECT THAT WE DOVE
INTO WAS CENTERING WHO WE CENTER
IN EVERYTHING THAT WE DO.
WE WANTED TO LEARN WHAT IS GOING
ON WITH OUR COMMUNITIES NOW AND
HOW CAN WE SUPPORT THE PEOPLE,
ALL OF US AGING IN COMMUNITIES
NOW.
DIVING IN THE WORK IS AMAZING
AND WHEN YOU TALKED ABOUT THE
WORK I KEPT THINKING ABOUT
THAT'S US DOWN THE ROAD AND
HAVING ALL THE BASES DOING
RESEARCH IN THE COMMUNITY AND
BUILDING THAT AND WE'RE BUILDING
THE INFRASTRUCTURE.
WE'RE ALSO LEARNING SO MUCH.
THE RESULTS ARE COMPELLING AND
WE COLLECT ED A LOT OF THROUGH
COVID AS WELL AND WHAT DOES THAT
TELL US?
IT'S BRINGING MORE QUESTIONS TO
THE TABLE FOR THE RESEARCH.
HAVING DATA ON OUR PEOPLE IS
CRITICALLY IMPORTANT.
WE JUST DON'T SHOW UP.
MAKING SURE WE HAVE THE DATA AND
EXPRESSING OUR VALUES ON ANY
DATA PROJECTS WE MAY ENTER INTO
WITH UNIVERSITIES OR ANY ENTITY.
OCAP PRINCIPLES WE HAVE DONE
TRAINING IN AND ENCOURAGE OTHERS
WORKING WITH US TO ENGAGE ACROSS
THE BORDER AT ALGONQUIN COLLEGE
AND TAKES PRINCIPLES AND HELPS
GUIDE US IN A WAY THAT
ACKNOWLEDGES HISTORY AS WELL AS
THE FUTURE OF WHERE RESEARCH IS
GOING.
AND MAKING SURE WE'RE SHARING
OUR SACRED STORIES AND
INCREASING CAPACITY TO CONTINUE
THE WORK IN THE FUTURE.
AND THIS IS AT NIH AND ALSO AT
THE CDC.
OUR INTERNSHIPS.
OUR COMMITMENT TO FUTURE
GENERATIONS IS INHERENT AND HOW
ARE WE BUILDING THE FUTURE
SCIENTIST SOMETHING WE'VE BEEN
ASKING OURSELVES FROM THE
BEGINNING.
WE'RE IMPLEMENTING OUR GEAR UP
PROGRAM AND IN OUR FIRST YEAR.
ONLY THREE STUDENT AT THIS POINT
IN THE PROGRAM BUT THEY'RE
LEARNING ALL THE TOOLS THAT SOME
OF US WENT THROUGH PROGRAMS AND
LEARNED TOO.
TO BE ABLE TO OFFER THE PROGRAMS
IS SOMEWHAT FULL CIRCLE BUT I
CAN'T WAIT UNTIL THE STUDENTS
ARE RUNNING THE PROGRAMS FOR US.
OUR SUMMER HEALTH INTERNSHIP
PROGRAM WAS ONE I HELPED IT LEAD
IN BOSTON.
IT'S A PROGRAM IN MAIN AT OUR
ORGANIZATION WHERE ANY
INDIGENOUS UNDERGRADUATE STUDENT
WITH AN INTEREST IN WELLNESS AND
HEALTH AND IMPROVING THAT IN OUR
COMMUNITIES TO COME ON BOARD AND
WORK WITH US FOR THE SUMMER.
THEY HAVE SPEAKERS AND TALK
CIRCLES AND SUPPORT PROGRAMS
BEYOND THE EIGHT WEEKS.
IT'S PART OF A FAMILY AFTER
THOSE EIGHT WEEKS WHERE WE
SUPPORT THEM BEYOND AND COLLEGE
CAN BE A LONELY PLACE FOR
WABANAKI STUDENTS AND FOUR ARE
GRADUATING FRIDAY.
OUR WABANAKI NEEDS ASSESSMENT
WAS PART OF A PROGRAM WE STARTED
IN 2010.
IT WAS ONLY A FEW INDIVIDUALS AT
THAT TIME AND WORKED WITH THE
TRIBAL HEALTH DIRECTORS AT EACH
NATION BECAUSE WE WEREN'T
SHOWING UP IN THE STATE HEALTH
STATISTICS.
IT WAS HARD FOR THEM TO SECURE
GRANTS AND TELL STORIES AND
EITHER THEY COULD TELL THEIR
STORIES VERY WELL IN THE
QUALITATIVE WAY BUT THAT
QUANTITATIVE DATA WAS
NON-EXISTENT.
IN 2010 THEY CREATED A HEALTH
NEEDS ASSESSMENT MODELLED AFTER
ASSESSMENTS SUCH AS BEHAVIORAL
RISK FACTOR SURVEILLANCE OR A
PREGNANCY RISK SURVEY AND OTHER
NATIONAL SURVEYS TO HAVE
COMPARABLE DATA.
2022, COVID PUT US BEHIND BUT
WE'RE ANALYZING THE DATA NOW TO
COMPARE IT TO A DECADE AGO AND
TO COMPARE WHERE WE'RE AT WITH
THE REST OF STATE OF MAINE.
AND ALWAYS MAKING SURE THAT WE
ARE LEAVING THE WORK.
AND WE HAVE CONTRIBUTED TO THE
SUCCESS OF THAT WORK AND BIG
THANKS TO ALL OF YOU AND I'LL
END IT THERE FOR QUESTIONS
LATER.
THANK YOU.
>>NEXT IT'S MY PLEASURE TO
INTRODUCE JESSIE ROBERTS FROM
THE CHOCTAW NATION OF OKLAHOMA
AND SPEAK ABOUT EXPERIENCE FROM
THE PERSPECTIVE BEING DIRECTLY
INVOLVED IN THE PROJECT AND
SANDY WAS INVOLVED IN THE
DEVELOPMENT OF YAPPALLI AND
CONTINUES TO LEAD IT AS A
PROJECT DIRECTOR FOR THE AN --
RANDOMIZED CONTROL TRIAL AND MS.
JESSIE ROBERTS WAS ONE OF THE
WOMEN PART OF THE PROGRAM AND
NOW LEAD ANOTHER NIDA FUNDED RCT
WITH NATIVE YOUTH AND AND
THEY'RE BOTH MEMBERS OF CHOC TA
NATION OF OKLAHOMA.
SHE'S A MENTAL HEALTH AND
PSYCHOLOGY THERAPIST BACKGROUND
AT CHOCTAW NATION AND SENIOR
MANAGER THERE AND SHE IS THE
CO-P.I. IN A NUMBER OF FEDERAL
GRANT PROGRAMS AND A CURRENT
MEMBER OF THE YAPPALLI WOMEN'S
LEADERSHIP GROUP AND THAT
PROGRAM LAID THE FOUNDATION FOR
THE SITE P.I.
SANDY IS THE DIRECTOR FOR THE
YAPPALLI CHOCTAW NATION
PROSECUTE PROJECT AND THIS WAS
DESIGN TO CREATE HEALTH LEADERS
FOR CONNECTING TO THE DREAMED
OUR ANCESTORS HELD FOR US AND
PRIOR HAD LOTS OF EXPERIENCE IN
GRANT LEADERSHIP FAMILIAR WITH
BEING PROJECT DIRECTOR WITH
DOMESTIC ASSAULT AND SUBSTANCE
ABUSE PROGRAMS AT CHOCTAW
NATION.
I SHOULD NOTE THIS PROGRAM JUST
FINISHED.
THEY JUST COMPLETED AFTER YEARS
OF COVID BUT OVER 150 CHOCTAW
WOMEN PARTICIPATED IN THE HEALTH
LEADERSHIP PROGRAM AND STARTED
AS AN OBESE AND DIABETES AND
SUBSTANCE ABUSE PREVENTION
PROJECT.
IT'S UNIQUE BECAUSE IT WAS --
IT'S A CHOCTAW HEALTH PROMOTION
MODEL BY THREE WALKING THE TRAIL
OF TEARS THROUGH TWO PILOT
STUDIES AND IN THE TYPICAL
WESTERN RCT TYPES OF PROJECTS
BECAUSE AND WE LOOKED AT THE WAY
WE TRANSFORM AND TALK ABOUT
OURSELVES AND OF THE SESSION OF
CURRICULUMS FOLLOWED BY THE WALK
OF TEARS WITH THE WOMEN IN
BUILDING CAREERS AND THEY WILL
GET A POT OF MONEY TO CONDUCT
THUR OWN COMMUNITY EVENT AND IS
SUPPOSED TO BE SUSTAINABLE AND
THE CURRICULUM IS BASED ON THE
ORIGINAL STRUCTURES AND TEACHING
WITH WHAT KIND OF ANCESTOR DID
MY ANCESTORS ENVISION ME TO BE
AND WHAT DO I WANT FUTURE
ANCESTORS TO BE AND I'LL TURN IT
OVER TO TALK ABOUT WHAT YOU WANT
TO TALK ABOUT.
>>WHEN WE FIR BECAME SISTERS
AND STARTED TALKING ABOUT
CREATING SOMETHING AROUND THE
TRAIL OF TEARS AND BRIDGING
HEALTH TO OUR PEOPLE WE WERE
CONCERNED BECAUSE TRAIL OF TEARS
IF YOU KNOW THE CHOCTAW PEOPLE
WE CAME FROM MISSISSIPPI AND
ALABAMA.
WE WERE REMOVED IN A TIME WHEN
WE WERE THE FIRST TO BE REMOVED
FROM OUR HOMELAND.
WE COINED THE TERM TRAIL OF
TEARS BECAUSE SO MANY OF OUR
PEOPLE DIED.
WE'RE THINKING WHY ARE WE GOING
BACK TO THIS TRAUMA THAT
REDEFINED WHO WE WERE AS PEOPLE
AND HOW ARE WE GOING TO DO THIS
IN A WAY WHERE WE'RE GOING BRING
HEALTH TO OUR PEOPLE.
WE WERE ASKING ALL THESE
QUESTIONS AS WE WERE GOING
THROUGH THE CONVERSATIONS.
WE DECIDED WE WERE GOING TO WALK
OURSELVES TO SEE IF IT IMPACTS
US.
IF IT CHANGES US THEN WE'LL SEE
IF WE WANT TO CREATE SOMETHING
OUT OF PIT.
-- OUT OF IT.
2012 WE DECIDED TO WALK IN AND
INSTEAD OF GOING BACK TO
MISSISSIPPI I FELT WHEN WE
CROSSED OVER THE MISSISSIPPI
PEOPLE OUR HOME WAS DIFFERENT.
WE WALKED ACROSS ARKANSAS AND
VILLAGE CREEK STATE PARK IS ONE
OF THE MOST SIGNIFICANT PLACES
YOU'LL SEE AND THE MOST INTACT
TRAIL OF TEAR SITES.
THE SOIL WAS SO SOFT THE PEOPLE
THAT WALKED ACROSS WORE IT DOWN
SO DEEPLY YOU HAVE TO EVEN NOW
REACH UP TO TOUCH THE ROOTS OF
THE TREES.
THAT'S HOW DEEP THE EARTH WAS.
IT WAS SUCH A POWERFUL
EXPERIENCE AND WE TOOK PEOPLE
ALL OVER THAT CAME TO WITNESS
WITH US TO HELP US UNDERSTAND
WHAT WE WERE EXPERIENCE IING ANT
WAS AN AMAZING EXPERIENCE AND IT
CHANGED WHO WE WERE AND
RELATIONSHIP TO OUR ANCESTORS.
WE RECOGNIZED IN OUR ANCESTORS
THEY HAD TO HOLD ON TO HOPES AND
DREAMS AND PRAYERS TO GET
THROUGH THAT.
IT WAS A BEAUTIFUL THING.
IT WAS A BEAUTIFUL THING TO
EXPERIENCE THEIR FEAT AND TO
HEAR THEIR VOICES BECAUSE YOU
COULD STILL FEEL THE PAIN THERE
AND WHAT THEY EXPERIENCED AND IT
GROUNDED US IN WHO WE ARE.
WHEN WE CAME BACK FROM THAT
EXPERIENCE WE WROTE A CURRICULUM
WE TALKED ABOUT HOW WE'D DO THIS
FOR OUR PEOPLE AND EXPERIENCE
CHANGE BECAUSE WE HELD OURSELVES
TO A HIGHER RESPONSIBILITY TO
WHO WE ARE AS PEOPLE AND WHO WE
ARE AS THE DESCENDANTS OF THE
ANCESTORS WHO WALKED THE TRAIL.
AND AND SOMETIMES YOU FORGET TO
ASK ABOUT THE LITTLE QUESTIONS
AND FOR US IT WAS MOSQUITOS,
CHICKS AND CHIGGERS.
THEY TRIPPED US UP BECAUSE WE
DIDN'T SEE A BEAR AND RACCOONS
AND CAMPING.
WE GOT A GROUP AND WE HAD A
SMALL GROUP FROM ONE OF OUR MOST
INTACT COMMUNITIES.
AND WHAT THEY TOOK AWAY FROM
THAT WAS A DEEP CONNECTION IN
WHO THEY WERE AND SEEMED TO
RESONATE.
EACH GROUP HAD A DEEPER
CONNECTION AND YOU NEED GOOD
FOOD BECAUSE PEOPLE GET GRUMPY.
THAT WAS ANOTHER STRUGGLE BUT WE
FOUND OUT BY THE TIME JESSE GOT
THERE ALL THE PIECES CAME
TOGETHER.
YOU CAN'T EXPECT EVERYTHING TO
HAPPEN JUST LIKE THAT.
AND YOU LEARN AND IF YOU VERY
THE HARD TO DO IT AND IF YOU
LISTEN TO YOUR ANCESTORS.
WE WANTED TO CREATE THE
CURRICULUM AND THAT'S WHERE THE
QUESTIONS CAME UP.
WHAT KIND OF ANCESTORS DID MY
ANCESTORS ENVISION ME TO BE AND
THOSE QUESTIONS HAVE REMAINED
WITH US AS WE CONTINUE ON AND
THOSE ARE QUESTIONS I STILL ASK
MYSELF.
FROM THE BEGINNING OF THIS
JOURNEY IT CHANGED OUR BEINGS.
I LOST 80 POUNDS AND IT'S BEEN
SIX, SEVEN YEARS NOW.
MY HEALTH IS MY COMMUNITY'S
HEALTH AND IF KWAEN CONNECT THAT
WAY NOT ONLY TO THE DREAMS OUR
ANCESTORS HAVE BUT TO DREAM IN A
WAY THAT WE SUPPORT EACH OTHER
AND CREATE SOMETHING THAT HAS
STRENGTHS ON OUR WEAKNESSES AN
IF WE CONNECT AS A COMMUNITY
IT'S IMPORTANT.
ONE OF THE BIGGEST TAKEAWAYS I
HAD WAS FOR INDIGENOUS PEOPLE
IT'S NOT ALWAYS ABOUT THE
INDIVIDUAL FITNESS GOALS OR THE
INDIVIDUAL -- WHATEVER,
MOTIVATIONS.
IT'S ABOUT BEING CONNECTED TO A
COMMUNITY AND BEING ABLE TO
SUPPORT EACH OTHER.
>>SOMETIMES WE DON'T DO FOR
OURSELVES BUT WILL DO FOR FO
OTHERS.
WE CAME FROM ALL WALKS OF LIFE
AND I WAS VALIDATED AS A WOMAN
BECAUSE I WAS RAISED BY MY
CHOCTAW GRANDPA AND MY MOM
WORKED TWO JOBS AND OLDEST OF
THREE AND I BECAME A MOTHER JUST
STEPPING INTO THAT ROLE AND BY 8
I WAS DRIVING A TRACTOR AND
HELPING MY GRANDMA GROW WATER
MELONS.
I JUST KNEW HOW TO SURVIVE AND
MY MOTHER GREW UP AS BOARDING
SCHOOL SURVIVORS.
THE MOTHERS LOVE THEIR CHOCTAW
SONS BUT US WOMEN HAD TO BE
TOUGH.
THAT'S ALL I KNEW TO DO.
IT WASN'T UNTIL I WAS OLDER AND
I BECAME A MOTHER I STARTED TO
REALIZE I NEEDED TO FIND OUT WHO
I AM.
WHAT DOES THIS MEAN FOR ME.
WHAT AM I GOING CARRY ON AND THE
QUESTIONS HELP ME ANSWER SOME OF
THOSE THINGS.
IT MOVED ME ALONG IN A WAY --
YOU KNOW YOU'RE SEARCHING FOR
SOMETHING BUT UNTIL YOU MOVE
INTO THAT YOU DON'T KNOW WHAT
THAT COULD BE.
I WILL FEEL LIKE I WILL ALWAYS
LEARN SOMETHING LIKE THAT.
THE LADIES I BONDED IN WE SLEPT
ON COTS IN THE WOODS, VILLAGE
CREEK, OWLS HOWLING AND ALL
KINDS OF THINGS AROUND US AND WE
LOVED EVERY SECOND OF IT AND WE
LAUGHED.
THAT WAS A MEDICINE I DOESN'T
UNDERSTAND WHEN YOU DO GROW UP
AROUND THE WESTERN MEDICINE AND
DOCTORS AND YOU DON'T REALIZE
THE LAUGHTER AND LOVE YOU SHARE
IS WHAT GETS YOU THROUGH.
AS A WOMAN I'M IN A LEADERSHIP
POSITION NOW.
WHERE I'M FROM YOU DON'T SEE
THAT A LOT.
YOU DON'T SEE A LOT OF EDUCATED
NATIVE INDIGENOUS WOMEN.
SO SOMETIMES IT'S HARD TO STAND
UP AND SAY THAT AND SO THEY GAVE
ME THE STRENGTH AND YOU ALL GAVE
ME THE STRENGTH.
IT'S IMPORTANT TO BE HERE.
>>SOME PEOPLE MOST RESISTANT
BECAME OUR STRONGEST LEADERS
AFTERWARDS AND IT WAS LIKE THEY
HAD THIS EPIPHANY.
MY NICKNAME WAS SATAN SANDY BY
THE TIME ONE YEAR WAS OVER WE
DID EVERYTHING IN OUR MOST
TRADITIONAL WAY.
WE DIDN'T HAVE A LOT OF
SEASONING AND I TOOK THE SALT
OFF THE TABLE FOR ONE MEAL
SUPPOSEDLY ONE MEAL TO TASTE.
AND SOMETIMES WE USED ASHES TO
FLAVOR AND A WANTED THEM TO
EXPERIENCE IN THE MOST AUTHENTIC
WAY.
I TOOK THE SALT OFF THE TABLE
BUT IT GOT TRANSLATED TO NOBODY
CAN HAVE SALT EVER IN THE REST
OF THE TRIP.
AND PEOPLE WERE PUTTING IT IN
AND SO THAT WAS A TRIP AND
KARINA AND I GOT POSTED ON A
FACEBOOK WALL AND SHE ALMOST
KILLED HERSELF EATING A HOT DOG
AND THE BOUGHT IT AND WE WERE
SUPPOSED TO BE EATING HEALTHY SO
THE STUFFED IT DOWN HER THROAT.
THE GETS BACK HOME AND SHE AND
HER SISTER WERE TALKING ABOUT
WHAT THEY JUST EXPERIENCED.
THEY ENDED UP WALKING ACROSS
DOWN AND BACK AND THOUGH THEY
HATED WALKING ON THE TRAIL AND
THEN THEY WENT TO THE GROCERY
STORE AND BOUGHT HEALTHY FOODS
AND TOOK A PICTURE OF THE
HEALTHY FOODS AND THEY SAID DAMN
YOU, KARINA AND SANDY, IS THE
POST AND MESSAGE WE GOT.
IT WHY IT -- IMPACTED HER TO
SHARE THAT AND THEN WE GET TO
JESSIE.
WE HAD BEAUTIFUL PEOPLE WITH
SUCH HEART --
>>NO SATAN SANDY.
I NEVER CALLED HER THAT.
WE HAD A CREW TEAM THAT WAS SO
GOOD AT GETTING PEOPLE SITUATED
AND TAKING CARE OF PEOPLE.
THE STRENGTH OF THAT THAT JUST
BUILDS UP AND WE WERE TRYING TO
GET THROUGH THE TRAUMA OF IT AS
PEOPLE AND WOMEN AND MEN THAT
WALKED AT THAT TIME BUT WE ALSO
REALIZED SOMEBODY WOULD HAVE
TRIPPED ON SOMETHING SOMEBODY
WOULD HAVE DONE SOMETHING THAT
IS FUNNY.
WE WERE GOING WITH IT AND IT WAS
BOTHERSOME TO SOME THAT WERE
EXPERIENCING IT FOR THE VERY
FIRST TIME BECAUSE THEY DIDN'T
UNDERSTAND WHERE WE WERE COMING
FROM.
WE WERE CELEBRATING THAT OUR
ANCESTORS HAD HOPE AND
CELEBRATING THAT YEAH, WHEN YOU
GET TO THIS VILLAGE CREEK AND
THEY WERE AWAY FROM THEIR
HOMELAND BECAUSE THEY TOUCHED
THEIR TREES BEFORE THEY LEFT
THEIR HOMELAND.
THEY WOULD HAVE SEEN TREES ON
THE NEW LAND THAT WERE THE
STATEMENT.
AND COULD STILL HEAL AND FEED
THEIR FAMILIES AND AS WOMEN THEY
WOULD HAVE BEEN LOOKING FOR THE
SIGNS OF MEDICINE AND FOOD AND
WAYS TO KEEP THEIR CHILDREN
ALIVE.
WE REJOICED AND THERE WAS BEAUTY
IN THE TREES AND THE FACT WE
WERE KEEPING OUR SPIRITS GOING
BECAUSE IT WAS HOT AND WE CHOSE
SOME OF THE LONGEST WALKS
WITHOUT TREES.
THOSE ARE THINGS THEY WOULD HAVE
GOTTEN THROUGH IT BECAUSE BY THE
TIME THEY ARRIVED IN OKLAHOMA,
THE NEXT YEAR THERE WERE BABIES
BORN.
THERE WERE STILL LIVING THEIR
LIVES.
THEY WERE STILL DOING WHAT THEY
HAD TO DO.
AND WE CARRY IN OUR BODIES THE
DNA OF SURVIVORS AND DNA OF
PEOPLE WHO WERE ABLE TO TRANS
AND GET PASSED IT ALL.
>>IT'S NOT SOMETHING SHARED IN
OUR CULTURE WHERE I'M FROM.
EVERYONE IS DIFFERENT BUT
GROWING UP I DIDN'T HEAR THOSE
THINGS AND HEAR WHO MY ANCESTORS
WERE MAINLY BECAUSE IT WAS
GRANNY AND GRANDPA AND THEY WERE
BOARDING SCHOOL SURVIVORS AND
THEN THE REVELATION THEY'RE NOT
THAT FAR REMOVED FROM US AND
STILL BREATHING AND LIVING WITH
THIS EVERY SINGLE DAY.
THEN IT LEARN WHY THE WOMEN IN
MY FAMILY MAY BE THE WAY THEY
ARE.
IT ISN'T BECAUSE THEY DON'T LIKE
ME, IT'S BECAUSE THEY DON'T
KNOW.
IT'S THE WAY THEY WERE FORCED TO
BE.
AND UNIN ONE OF THE PLACES YOU
STAYED THERE WAS SOMETHING FOR
EACH AND EVERY ONE OF US AND
UNTIL WE WALKED THE STEPS WE
DIDN'T KNOW WHAT IT WOULD BE AND
AS WE HAD EACH OTHER TO DISCOVER
AND CRY WITH AND LAUGH AND SING
WITH AND SAYING I WONDER WHAT
THEY WOULD HAVE SAID AND DONE.
I WONDER AND BROUGHT THEM TO
LIFE WITH US.
SOMETIMES IT CHANGES PEOPLE.
THAT'S THE CLINICAL SIDE OF ME
THAT STRUGGLES WHEN I HAVE TO
DIAGNOSE PEOPLE OR HAVE TO DO A
TREATMENT PLAN.
WHEN I'M WITH MY CHOCTAW PEOPLE
YOU CAN DESCRIBE IT.
AND WITH WHAT YOU'VE ENGLISHED
YOU MAY NOT SEE BUT IT'S WORTH
IT AND CHANGES PEOPLE.
IT HELPS IN SO MANY WAYS.
>>WE HAD A FACEBOOK WALKING
GROUP AND PEOPLE FROM NEW
ZEALAND AND OTHER PLACES AND
THEY WOULD WALK AND I'VE DONE
PLANKING CHALLENGES BUT WE HAD
TO RECORD OURSELVES AND POST IT
ON FACEBOOK.
SOMEWHERE OUT THERE I'M DOING
PLANKS.
ONE THEIR GROUPS DID A BIKING
GIVEAWAY FOR YOUTH INTRODUCING
THE YOUTH TO BIKING SAFETY AND
THAT TEAM ALSO DOES A TRAIL OF
TREES BIKING RIDE WE WERE ALWAYS
CROSSING PATHS WHEN THE BIKE
TEAMS WERE OUT.
THEY'RE STILL DOING IT AND
HOLDING IT AND STILL TRYING TO
INTRODUCE CHILDREN TO BIKING AS
A PHYSICAL ACTIVITY.
SOME FAMILY WOULD COME BACK AND
BRING THEIR EXTENDED FAMILY
TOGETHER AND TALK ABOUT THE
IMPORTANCE OF THEIR LAND AND
HISTORY AND WHERE THEY CAME FROM
AND WHY THEY WERE HERE.
IT BROUGHT FAMILIES TOGETHER
WITH A DIFFERENT UNDERSTANDING.
ONE OF THE ACTIVITIES I DID WAS
A TURTLE SHELL I WOULD HAVE THEM
WRITE THEIR STRENGTHS AND WHAT
WAS YOUR SHELL AND WHERE DID YOU
PULL FROM TO KEEP YOU STRONG
WHEN YOU NEEDED IT AND I TALKED
TO A LADY AND SHE'S GOT IT IN
HER HALLWAY AND HAS IT UP AND
WHEN SHE HAS A ROUGH TIME SHE
LOOKS AT WHAT THE NEEDS TO PULL
FROM TO GET THROUGH WHAT SHE
NEEDS TO DO AND THEY UNDERSTAND
WHO THEY'RE SERVING AND THAT WAS
A WONDERFUL EXPERIENCE.
THERE'S A COUPLE STORIES AND I
WAS TALKING AND THE TREES ON THE
EDGE YOU CAN REACH UP AND TOUCH
THE ROOTS AND HE WAS LOOKING AT
THE TREE AND SAID LOOK HOW
STRAIGHT THE TREE IS GOING KIND
OF LIKE US BECAUSE IT HAS DEEP
ROOTS TO BE ABLE TO STAND THERE
AT THE EDGE OF THAT AND OVERCOME
AND GROW STRONG AND STRAIGHT.
AND I WAS WALKING PAST HIM AND
HE WAS HUMMING ONE OF OUR SONGS
UNDER HIS BREATH AND THE
EXPERIENCE OF IT WAS CONNECTED.
IT WAS SOMEHOW CONNECTED TO THE
PAST IN A WAY THAT WAS A
BEAUTIFUL AND HE UNDERSTOOD THE
SACRIFICES MADE AND THE
RESPONSIBILITIES OF THOSE
SACRIFICES.
>>AND YOU'RE ABLE TO TEACH
THOSE WOMEN AND THINGS IN THE
BEHAVIORAL HEALTH WORLD WE'D
CALL MINDFULNESS.
WE WOULD CALL COMING OUT OF
BOUTS OF DEPRESSION OR HAVE GOOD
SELF-CARE.
WE WERE ABLE TO EXPLAIN IT AND
DO IT IN A WAY AND DO IT IN A
WAY THEY UNDERSTAND VERSUS
THROWING BIG WORDS AT THEM THEY
WOULD NEVER UNDERSTAND AND
EXPERIENCED IT AND THEY TOOK IT
ON AND THEY WERE ABLE TO TEACH
THEIR CHILDREN AND HUSBANDS AND
FAMILIES.
IT WAS A SIMPLER CONCEPT THAN
WHAT A LOT OF TIMES IS JUST
CLINICALLY TOLD FOR THEM TO DO.
TO ME IT'S A SIMPLE THING BUT ID
MADE A DIFFERENCE.
>>A COMMUNITY MEMBER CAME TO ME
AND SAID YAPPALLI WOMEN WE KNOW
THEY ARE BECAUSE THEY'RE
DIFFERENT.
THAT WAS BASED ON COMING BACK
AND HOLDING YOURSELF DIFFERENTLY
AND THE SISTERHOOD THAT CAME
FROM THAT AND THE 2019 GROUP HAS
AMAZING CONNECTION TO SISTERHOOD
AND THEIR EXPERIENCE WAS SO
IMPACTFUL AND POWERFUL TO THEM
THE 2020 GROUP DIDN'T GET TO GO
AND THEY'RE STILL TRYING TO
FIGURE OUT A WAY TO SPONSOR AND
THEY WANT TO GET THE 2020 GROUP
THE CHANCE TO WALK THE TRAIL AND
HAVE THAT EXPERIENCE.
THEY'RE STILL WORKING ON IT AND
WHAT AN AMAZING THING TO WANT TO
CONTINUE TO SHARE THAT.
FINALLY TLHERE WAS THE CREATION
OF COMMUNITY AROUND WELLNESS AND
HEALTH AND COMING TO A PLACE OF
CARING AND BE ABLE TO SHARE
STORIES AND KNOW EACH OTHER IN
TIMES OF TRIALS AND TRIBULATIONS
AND TO BE ABLE TO SHARE LAUGHTER
ABOUT THE TRIALS AND
TRIBULATIONS AND TO KNOW WE ARE
CONNECTED IN A WAY OUR ANCESTORS
CONNECTED TO SURVIVE.
WHAT YAPPALLI TAUGHT ME IS WE
ARE MORE THAN OUR PHYSICAL
BODIES AND DIAGNOSES.
WE ARE CONNECTED ACROSS AGES AND
TIME AND PLACE TO OUR HISTORY
AND OUR RESPONSIBILITY TO CREATE
HEALTH FOR FUTURE GENERATIONS.
WHEN WE ARE CONNECTED AS
INDIGENOUS PEOPLE WE COME ALIVE.
>>IT'S A GOOD REMINDER WE'RE
NOT DEFINED BY OUR TRAUMAS BUT
BY THE LOVE OF OUR ANCESTORS.
THEY WANTED TO SHARE A BRIEF
VIDEO OF THE YOUNGEST PERSON ON
THE PILOT STUDY WAS 12 YEARS OLD
AND CREATED THE DIGITAL STORIES.
SHE IS NOW JUST COMPLETED HER
MASTERS IN PUBLIC HEALTH DOING
RESEARCH AND NOW GOING INTO
MEDICAL SCHOOL.
THIS IS HER 12 YEARS OLD AFTER
COMPLETING THE FIRST PILOT.
>>WHEN I FIRST HEARD ABOUT THE
YAPPALLI WALK I WAS THRILLED.
I'D BEEN ON THE TRAIL OF TEARS
AND BEING CHOCTAW I ALWAYS
WANTED PEOPLE TO KNOW THERE WAS
MORE THAN ONE TRIBE THAT WALKED
THE TRAIL.
HAVING TO TELL PEOPLE OVER AND
OVER IT WASN'T JUST A TRAIL, ALL
TRIBES HAVE THEIR OWN BUT TO
FIVE TRIBES IT WAS RECOGNIZED
AND AS THE YOUNGEST ON THE WALK
I WANT PEOPLE TO KNOW ABOUT THE
TRAIL AND THINK, CHOCTAWS WALK
THAT.
I WOULD HAVE NEVER THOUGHT I
WOULD HAVE AN OPPORTUNITY TO
WALK AND EVERY STEP OR BERRY I
PICKED OR EVERY WORD I SAID OR
HEARD MADE ME WANT MORE AND MORE
TO SHARE MY EXPERIENCE WITH THE
WORLD.
ONE SPOT WE WALKED IN WAS
MYSTIFYING.
SEEING WHAT WAS WALKED BY TRIBES
I WILL SHOW PEOPLE WHAT HAPPENED
TO ANCESTORS AND SHOW PEOPLE WHY
I'M STANDING HERE WITH MY FAMILY
AND TRIBE AND WILL SHOW PEOPLE
WHAT IT MEANS TO BE AMERICAN
INDIAN AND NO MATTER WHAT HAS
HAPPENED IN THE PAST OR HAPPENS
IN THE FUTURE, WE WILL ALWAYS BE
HERE BECAUSE WE ARE STRONG LIKE
THE EARTH.
THE SOIL OUR ANCESTORS HAVE
WALKED UPON.
THE CLOUD WE LOOKED UP AND THE
AIR WE BREATHE ON THE TRAIL THEY
WALKED BECAUSE THEY WANTED US TO
FEEL THE SOIL BETWEEN OUR TOES.
SEE THE CLOUD, BREATHE THE AIR
KNOWING THEY WALKED.
THEY WALKED FOR US.
THE CHOCTAW TO BE HERE TODAY BUT
THEY ALSO WANTED THE JOY THEY
SEE AS THEY LOOK DOWN IN DANCE
AND SING LAUGH WITH US AS WE
EXPERIENCE THE TRAIL IN OUR OWN.
WE DID THAT BECAUSE THERE WAS
LOVE, JOY, HOPE AND STRENGTH ON
THE TRAIL THEY WALKED AND THE
PEOPLE WHO WOULD COME AFTER
THEM, NOT TO THANK THEM FOR THE
MILES THEY WALKED OR PAIN FELT
BUT THE JOY THEY WERE IN AND THE
THING WE CALL FAMILY AND LOVE.
IT'S BECAUSE WE'RE HAPPY AND
LOOK BACK ON OUR FAMILY AND
THANK THEM FOR KEEPING THE
CULTURE AND KEEPING THE LOVE.
IN WALKING THE TRAIL HAS MADE ME
THANKFUL FOR WHAT THEY DID AND
AWARE OF WHAT THEY WILL DO.
>>SHE WAS PART OF THE FIRST
GROUP AND DID THE FIRST WALK
WITH ALL OF US AND HELPED TO
BRING THIS BOARD IN CHOCTAW
NATION, BEHAVIORAL HEALTH AND IS
NOW THE MAIN TRIBAL LIAISON AT
SAMHSA.
SO THANK YOU, LADIES.
LET'S OPEN IT UP FOR QUESTIONS
AND WE HAVE UNTIL 3:00 AND WE
HAVE QUESTIONS FOR THE
PANELISTS.
>>THANK YOU, MADAME CHAIR.
MANY TIMES OUR COMMUNITIES DON'T
HAVE THE PROGRAMS OR PROJECTS
UNTIL RESEARCH COMES IN MANY
PROGRAMS DON'T HAVE DATA SYSTEMS
IT'S ALL PAPER.
MY QUESTION, I NOTICED RED CAP
WAS USED WITH THE TRUTH RACIAL
HEALING AND TRANSFORMATION.
I KNOW THERE'S A LOT OF DATA
SOVEREIGNTY GRANTS AND WE LOOKED
AT GET RED CAP FOR OUR TRIBE
HOWEVER, IT WAS VERY DIFFICULT
TO GET THAT.
WE WANT TO HAND IT OVER TO OUR
TRIBAL PROGRAMS BUT THEY DON'T
HAVE THE SURVEY TOOLS OR DATA
SYSTEMS THERE'S ONE QUESTION I'D
LIKE TO POSE IS HOW DO WE BUILD
CAPACITY BY BUILDING THE DATA
SYSTEMS OR TOOLS THAT ARE TRIBAL
PROGRAMS AND TRIBES CAN USE MORE
READILY RATHER THAN HAVING TO
COME IN AND USE THE UNIVERSITY
SYSTEMS.
WE NEED TO BUILD THE CAPACITIES
WITHIN OUR COMMUNITYIES IF WE CN
IDENTIFY SOMETHING AND FIGURE
OUT HOW TO MAKE IT READILY
AVAILABLE IS SUPER HELPFUL TO
OUR TRIBAL COMMUNITIES AND
CAPACITY BUILDING.
I FORGOT MY SECOND QUESTION.
THANK YOU.
>>GREAT QUESTION AND COMMENT.
A LOT OF CAPACITY NEEDS TO BE
BUILT FOR COMMUNITIES.
I HAD A COLLEAGUE AND WHAT SHE
WAS ABLE TO DO IS SHE OBTAINED
KELLOGG DOLLARS AND SHE
DEVELOPED A TRAINING CALLED
TRIBAL DATA SOVEREIGNTY.
IT'S TO TRAIN PROGRAM FOLKS IN
THE COMMUNITY TO LOOK AND HOW TO
MANAGE IT.
AND THEY'LL PERCEIVE THE
TRAINING AS WELL AND HOW DO THEY
MANAGE WHAT'S BEING COLLECTED IN
A SINGLE EXCEL TYPE OF
FORMATTING NOT A SOPHISTICATED
SOFTWARE PACKAGE.
THAT'S ONE WAY WE'VE BEEN ABLE
TO DEVELOP CAPACITY AROUND DATA
ISSUES.
>>WHAT I SAW HERE WAS
INSPIRING.
AND WE COULD HAVE SHOWN IT TO
THE TRIBES TO UNDERSTAND HOW YOU
CAN DO THIS PARTICIPATORY
RESEARCH.
NOT EASILY BUT HOW TO DO IT
BECAUSE AND WHAT YOU DID WAS YOU
TOOK ON HISTORICAL TRAUMA
DIRECTLY.
ONE THING WE HAVE DIFFICULTY
DOING IS TO HAVE PERSPECTIVE AND
BY DOING WHAT YOU DID WE WERE
ABLE TO BRING POSITIVITY TO THAT
AND BE ABLE TO LET GO OF SOME OF
THE BAD PARTS OF THAT.
WHEN YOU LOOK AT DATA COLLECTION
YOU HAVE STO START SOMEWHERE.
AND MANY CAN'T EVEN TELL YOU ME
MAIN CAUSES OF DEATH BECAUSE THE
ENROLLMENT COLLECTS DEATH
CERTIFICATES AND THEY GO IN A
FILE.
NOBODY LOOKS AT THEM, NOBODY
ANALYZING THEM AND NOBODY DOES
ANYTHING WITH THE INFORMATION.
THE MOST BASIC THINGS THAT
HAPPEN IS YOUR BIRTH AND YOUR
DEATH.
THOSE ARE SOME OF THE MOST BASIC
THINGS.
SO I DON'T KNOW.
I JUST KNOW WHEN YOU'RE TRYING
TO TALK TO SOME OF THE
COMMUNITIES ABOUT HOW TO DO SOME
OF THESE THINGS --
[OFF-MIC]
>>THANK YOU AND THANK YOU FOR
YOUR PRESENTATIONS THEY WERE
INSPIRING.
THIS IS BEING RECORDED AND THESE
ARE GREAT EXAMPLES OF AND THESE
ARE PARTICIPATORY IN ASKING THE
QUESTION.
A LOT OF TIMES WE COLLECT DATA.
I'M A NERD LIKE THAT TOO BECAUSE
WE'RE ALWAYS COLLECTING THE DATA
AND ONE THING IS WHEN YOU
COLLECT THE DATA YOU COLLECT THE
DATA AND WE'RE ASKING THE
QUESTION IS WHAT IS IT SAYING?
WHAT IS THE DATA TELLING US?
WE SHOULD BE ASKING WHY AREN'T
WE GETTING HEALTHIER OR WHAT IS
IN OUR COMMUNITY THAT'S
PREVENTING US FROM GETTING
BETTER OR WHY DO WE CONTINUE TO
BE AFFECTED MORE THAN OUR
NEIGHBORS?
WHY ARE THE COMPARISONS
DIFFERENT OR WHERE OUR OUR
STRENGTHS?
ALL THE QUESTIONS WE HAVE AND A
LOT OF TIMES WHEN TALK TO YOUNG
PEOPLE ESPECIALLY KIDS, THEY
ALWAYS ASK THE BEST QUESTIONS,
RIGHT.
THEY ALWAYS LEAVE YOU
DUMBFOUNDED LIKE THAT'S A GREAT
QUESTION.
YOU NEVER REALLY THINK ABOUT
THOSE AS RESEARCH QUESTIONS BUT
THOSE ARE THE RESEARCH QUESTIONS
WE COULD BE THINKING ABOUT OF
WHY AREN'T WE DOING THIS AS A
MODEL IS IT THAT SIMPLISTIC IT
COULD BE SOMETHING LIKE THAT AND
AND WE HAVE PEOPLE IN OUR
COMMUNITY CONTINUING TO SUPPORT
PEOPLE LIKE YOU AND IN MY ROLE I
APPRECIATE BEING AS A TRIBAL
LEADER TO BE ABLE TO CONTINUE TO
SUPPORT OTHER PEOPLE THAT ARE IN
ACADEMIA, THAT ARE GOING INTO
THESE FIELDS, TO BE ABLE TO SAY
WE NEED PEOPLE.
WE NEED TO SUPPORT PEOPLE IN
THOSE ROLES AND I WANT THEM TO
ANSWER THE QUESTIONS OF WHAT'S
HAPPENING IN MY COMMUNITY I NEED
TO UNDERSTAND WHAT'S GOING ON
WITH RESEARCH AND WITH JUST WHAT
YOU TALKED ABOUT WITH THE
CURRICULUM OF THE LEARNING IN
OUR LANGUAGE AND CULTURE AND IT
OPENED MY EYES.
JUST REALLY OPENED MY EYES HOW
WE CAN ASK THESE QUESTIONS AND
CREATE A WHOLE CURRICULUM AROUND
IT.
YOU TALKED ABOUT IT AND JUST
AMAZING.
IT'S REALLY INSPIRING SO I
APPRECIATE IT.
BRITTANY.
>>THANKS.
>>WE TALKED ABOUT HOW CAN
COMMUNITIES BE SUPPORTIVE IN
TERMS OF QUANTITATIVE DATA IT
MAKES SENSE AND ALONG THE SAME
LINES THAT WHAT WE HEARD SO MUCH
IS THE IMPORTANCE OF STORIES AND
OUR STORIES AND QUALITATIVE DATA
AND HAVING SUPPORT FOR
QUALITATIVE DATA ANALYSIS IN
COMMUNITIES IS SOMETHING I SEE
INTEREST IN BUT WHAT ARE SOME
WAYS WE CAN BETTER SUPPORT THAT
FOR COMMUNITIES?
BUT ALONG THE LINES OF
INFRASTRUCTURE AND THINKING OF
THE QUANTITATIVE PIECE AND
COMING DOWN TO THINGS LIKE
INTERNET CONNECTION AND MAKING
SURE WE HAVE GOOD BROADBAND AND
THEY VARY IN THE NATIONAL AREA.
AND I APPRECIATED ALL THE
PRESENTATIONS AND ALL THE WORK
YOU ARE DOING.
I WANTED TO HEAR MORE YOUR
THOUGHTS ON THESE ARE THE KINDS
OF PROJECTS THERE'S INTEREST IN
IMPLEMENTATION STUDIES AND
COMMUNITIES WORK WITH
APPLICATION-BASED AND MOPROMOTI
RESILIENCE AND WHAT ARE SOME
AREAS YOU THINK COULD BE CHANGED
TO BEST FACILITATE THIS KIND OF
WORK BASED ON YOUR EXPERIENCES?
>>I MAY HAVE ASKED A FIVE-POINT
QUESTION.
I'D LIKE IT HEAR PANELISTS TALK
ABOUT THE IMPLEMENTATION SCIENCE
WORK OR WORK FOCUSSING ON HEALTH
AND WELLNESS PROMOTION.
>>THE DIFFICULT WHEN YOU ARE
LOOKING AT NIH FUNDING IS
THERE'S SO CATEGORICAL AND WE'RE
NOT INTERESTED IN A CERTAIN
DISEASE BUT THE WHOLE SO IT'S
HARD WHEN WE WRITE THESE, OUR
FIRST STUDIES WERE FUNDED BY
NIDA.
I HELPED SUPPORT THE WORK BUT
THE COMMUNITIES DIDN'T WANT TO
FOCUS ON SUBSTANCE USE.
WE HAD TO REALLY AGAIN BE
RESPONSIVE TO THEM AND IF YOU'RE
GOING TO FIND WHAT WE'RE DOING
WRONG, YOU'LL FIND IT.
THEY WERE LIKE WE DON'T WANT TO
FOCUS ON WE KNOW WE HAVE
CONCERNS AROUND ALCOHOL AND WANT
TO KNOW WHAT'S WORKING AND WANT
TO KNOW THE STRENGTHS.
AND HOW DO WE WRITE THIS WITHOUT
A NEGATIVE DISEASE FOCUS AND
THAT'S WHERE WE TRIED TO BE
AGAIN AND LOOKING AT THE NIH
MECHANISM TO DO THAT IS HAVING
TO DO -- THAT'S THE INNOVATION
RIGHT THIS INNOVATION PIECE WE
ALL HAVE TO WRITE ABOUT.
>>CAN I ADD SOMETHING?
WE HAD A DISCUSSION ABOUT THIS
THIS MORNING AND DON'T WANT TO
LOSE THE THOUGHT.
THAT IS WHEN WE DO SOME THINGS
TOGETHER AS A COMMUNITY, IT
ADDRESSES IT WITH A BIT A
DIABETES GRANTS OR A
HYPERTENSION GRANT OR ONE OF
THESE DISEASES.
IF WE'RE ABLE TO GET FUNDED TO
ADDRESS THE TOTALITY OF THINGS
IN OUR COMMUNITY AND BUILD
RESILIENCE WE ADDRESS ALL THESE
OTHER THINGS AT THE SAME TIME
THAT'S WHAT'S DIFFICULT WHEN WE
LOOK AT THE GRANTS FROM NIH.
THEY'RE SPECIFIC AND NARROW
WINDOWS OF THINGS THEY WANT US
TO LOOK AT AND IF WE LOOK AT
THINGS TO BUILD A HEALTHIER
COMMUNITY WE'RE ADDRESSING MOST
THOSE THINGS AT THE SAME TIME.
>>I DON'T KNOW IF THIS GOES TO
THE RED CAP AND OTHER THINGS
THAT ARE NEED ED THE FUNDING THT
IS NEEDED TO DO THE WORK IS
HUGE.
SCARCITY IS NOT ALLOWED AND
WE'LL DREAM AND WE'LL CREATE
THAT.
WHEN WE CREATED THAT IT WAS
PRETTY BIG.
WHAT IS THE SYSTEM THAT ALLOWS
THAT TO HAPPEN?
IT'S NOT JUST ONE SYSTEM.
IT'S A COMPLEXITY OF SYSTEM AND
IN THIS COUNTRY WE'RE JUST NOT
THERE'S A NO SENSE TO IT.
WAVE HAD TO MAKE SENSE OF THE
COMPLEXITY.
WILLING TO SHARE THAT STORY BUT
IT HASN'T LIKE YOU SAID BEEN
EASY AND IT IS SO ESSENTIAL FOR
DATA SOVEREIGNTY AND PROTECTION
TO KEEP OUR STORIES SACRED.
THANK YOU FOR BRINGING THOSE
ISSUES UP.
>>FIRST, THANK YOU FOR SHARING
YOUR INFORMATION BECAUSE YOU CAN
EASILY SEE THE PASSION EACH YOU
HAVE PUT INTO YOUR WORK AND
WE'VE BEEN ABLE TO TAKE THE
PASSION YOU SHARED AND TAKE IT
FORWARD.
IT'S NOT JUST THE NIH BUT ALL
THE TACS.
THAT'S WHERE WE HAVE THE VOICE.
THAT'S WHERE WE AS LEADERS NEED
TO PUSH EFFORTS TO TAKE YOUR
STRENGTH AND SHARE WITH THE REST
OF THE TRIBES.
MANY OF THE TACS DON'T EVEN HAVE
REPRESENTATION FROM ALL THE
AREAS.
I SHARED AT LUNCH WITH THE GROUP
I WAS TALKING TO, LEADERSHIP IS
SCARY.
WE DON'T WANT TO TOUCH THAT MUCH
LIKE WHAT YOU SHARED IN YOUR
STORY, WELL, YOU SAID IT THE
SAME WAY BUT YOU DON'T HAVE THE
LETTERS BEHIND YOUR NAME.
WE HAVE TO BE ABLE TO TAKE IT
FORWARD PUSH FROM ALL THE
ENTITIES TO DEVELOP THE
INFRASTRUCTURE AND TELL THE
STORIES.
AS OUR ANCESTORS HAVE DONE
THEY'VE GIVEN US THE STRENGTH TO
SURVIVE.
NOW WE HAVE A NAME CALLED
INTERGENERATIONAL TRAUMA BUT WE
LIVED THROUGH IT AND SURVIVED
IT.
OUR ANCESTORS SURVIVED AND WE
HAVE TO CARRY THE WORDS ON.
>>I THINK IT'S GOING TO COME
WHERE WE HAVE TO MAKE A PARADIGM
SHIFT TO WHAT WORKS AND WHAT IS
MAKING US HAPPY.
WHERE IS OUR STRENGTH COMING
FROM AND HOW DO WE INCORPORATE
THAT TO OUR LIVES AND DREAM BIG
AND TAKE AWAY ALL THE BARRIERS
THAT WE SEE AND THE FEARS THAT
ARE PLACED UPON US TO SAY THIS
IS WHAT OUR ANCESTORS WANTED US
TO HAVE AND THE LIFE WE DESERVE
TO HAVE.
WE JUST HEARD FROM THREE AMAZING
COMMUNITY INITIATIVES THAT WERE
STARTED WITH RESEARCH AND SO CAN
WE GET A LIST OF THE TRIBAL
COMMUNITY RESEARCH MAYBE IT'S
NOT A RANDOMIZED CONTROL TRIAL
AND IT HAD GREAT IMPACTS.
CAN WE GET THAT OUT TO THE OTHER
ENTITIES AND APARTMENTS?
I KNOW A LOT OF FUNDING GOES
THROUGH SAMHSA.
THERE'S KELLOGG AND OTHER
ENTITIES THAT FUND THE FOLLOW-UP
OF THESE BUT CAN WE GET AT THE
PROGRAMS THAT HAVE GONE THROUGH
THE NIH TO THESE OTHER ENTITIES
THAT DO THE FUNDING AND SAMHSA
AND THEY FUND A LOT OF THINGS IN
TRIBAL COMMUNITIES BUT IF THEY
KNEW WHAT WAS DONE HERE AT THE
NIH AND HAD IMPACT IN OUR
COMMUNITY ALREADY BECAUSE IT'S
ALL ABOUT SUSTAINABILITY AND
DISSEMINATION.
A LOT OF TIME RESEARCH PROJECTS
HAPPEN BUT NOT DISSEMINATED
BECAUSE THE GRANTS ARE OVER.
SUSTAINABILITY IS MY
RECOMMENDATION IF ANYONE HAS
QUESTIONS HOW TO CONTINUE THESE
IN OUR COMMUNITIES I'D BE OPEN
TO THAT.
>>MY NATION WE'RE HOSTING THE
CDC TAC IN SEPTEMBER IN OUR
COMMUNITY.
CDC WAS SPECIFIC ABOUT THE
CRITERIA YOU HAVE TO FOLLOW AND
THIS IS WHAT WE WANT YOU TO SHOW
US AND WE SAID NO, YOU'RE COMING
TO OUR COMMUNITY.
WE'RE GOING TO SHOW YOU WHAT WE
WANT YOU TO SEE AND WHAT WE WANT
YOU TO FOCUS ON IN TERMS OF
FUNDING.
I THINK WE ALL HAVE TO DO THAT.
>>THANK YOU VERY MUCH TO THE
PANELISTS FOR SHARING YOUR
WISDOM AND EXPERIENCES AND THE
LAUGHTER AND LOVE AND ALL THE
BEAUTY THAT GOES WITH THE
DIFFERENT KINDS OF PROJECTS THAT
WERE SHARED.
THANK YOU, THANK YOU ALSO FOR
YOUR COMMENTS.
I WANTED TO ACKNOWLEDGE THAT THE
PORTFOLIO ANALYSIS IS ONE OF THE
WAYS WE CAN PULL OUT THAT
INFORMATION YOU'RE REQUESTING
AND DISSEMINATING AND SHARING IT
AND ALSO THERE'S OPPORTUNITY TO
DO THINGS LIKE CONFERENCE IN THE
FUTURE AND POTENTIALLY THINGS
LIKE DEVELOPING A TRIBAL
RESEARCH CONSORTIA ACROSS HHS
AND IDEAS OUT THERE.
AGAIN, THANK YOU, EVERYBODY.
WE'RE GOING TO TAKE A LITERAL
FIVE-MINUTE BREAK.
I'M GOING CEDE SOME OF MY TIME
AT THE END OF THE DAY TO GET
BACK ON TRACK AS MUCH AS
POSSIBLE.
FIVE MINUTES, PLEASE.
THANK YOU.
>> WE'LL HEAD TO THE NEXT
PANEL AND HAND IT OFF TO THE
CHAIRWOMAN.
>>OUR NEXT PANEL WE HAVE NIH
INNOVATIONS IN RESEARCH AND
RESEARCH TRAINING AND THE FIRST
PIANIST IS MICHELLE SARCHE FROM
THE COLORADO PUBLIC HEALTH
SCHOOL CENTERS FOR AMERICAN
INDIAN AND ALASKAN NATIVE INDIAN
HEALTH AND LOOKING AT
INNOVATIONS IN NATIVE CHILD
HEALTH DEVELOPMENT RESEARCH AND
TRAINING.
WE LOOK FORWARD TO YOUR
PRESENTATION AND I'LL HAND IT
OVER TO YOU.
THANK YOU.
>>A LITTLE BIT LOUDER.
MY NAME IS MICHELLE SARCHE A
MEMBER OF THE LAC COURT COURT
TRIBE AND MY GRANDMOTHER WAS
BORN AND RAISED HER NAME IS ROSE
CORBAN LARANGE AND FEEL HER IN
MY WORK OF COMMUNITIES THROUGH
RESEARCH.
I'M TRAINED AS A CLINICAL
PSYCHOLOGIST AND I HAVE BEEN I
TRAINED AT LOYOLA UNIVERSITY IN
CHICAGO.
SOME OF MY EARLIEST WORK WAS IN
THE CHICAGO URBAN AMERICAN
INDIAN COMMUNITY AND WORKING
WITH TRIBES SINCE THE MID '90s.
FOR 25 YEARS NOW I'VE HAD THE
GOOD FORTUNATE TO VISIT TRIBAL
COMMUNITIES AND GET TO KNOW A
LOT OF PEOPLE.
EVERY TIME WE HAVE' GATHERING
LIKE THIS IT'S ALWAYS A REUNION
AND THERE'S ALWAYS A CONNECTION
I DIDN'T KNOW THAT I HAD.
THERE'S ALWAYS JUST MAYBE ONE
DEGREE OF SEPARATION BETWEEN
ANYONE ONE OF US.
I KNOW WE ALL FEEL BLESSED BY
THOSE CONNECTIONS WE HAVE WITH
ONE ANOTHER.
AND IN THIS A LITTLE BIT OF TIME
TODAY I WANT TO TALK ABOUT OUR
NATIVE CHILDREN'S RESEARCH
EXCHANGE SCHOLARS CONFERENCE AND
NETWORK.
I'LL ALSO MENTION OTHER WORK
THAT RELATES AND CONNECTS
THROUGH OUR EARLY CHILDHOOD
CENTER FUNDED BY THE
ADMINISTRATION OF CHILDREN AND
FAMILIES AND ACF AND WE'RE
FUNDED TO GROW THE FIELD OF
EARLY CHILDHOOD RESEARCH WITH A
PARTICULAR FOCUS ON TRIBAL HEAD
START, HOME VISITING, CHILDCARE
AND MORE RECENTLY PROGRAMS.
I ALSO JUST WANTED TO MENTION A
PROJECT I WON'T HAVE TIME TO
TALK ABOUT BUT IT CONNECT TO THE
LAST PANEL AND THAT'S THE NATIVE
WISE CHOICES AND MAKING CHOICES.
IT'S AN ALCOHOL EXPOSED
PREGNANCY PREVENTION PROGRAM FOR
URBAN NATIVE YOUNG WOMEN AND A
MOBILE HEALTH APP WE DEVELOPED.
JUST PLANTING THE SEED IN CASE
THAT SPARKS ANY INTEREST OR
CONNECTION I'D BE HAPPY TO HAVE
FOLLOW-UP CONVERSATION I WANT TO
THANK TATIANA FOR SHOWING UP AND
THE NATIVE CHILDREN'S RESEARCH
EXCHANGE WORK FUNDED BY NIDA AND
IT HAS INVESTED IN BOTH THE
SCHOLARS PROGRAMS AND CONFERENCE
OVER MANY YEARS BUT THE CHILD
RESEARCH CENTER CONTRIBUTED
SIGNIFICANT RESOURCE TO KEEPING
NCRE GOING SINCE 2008 I'M GOING
TO FOCUS MOSTLY BECAUSE THIS IS
THE TRAINING SECTION OF THE DAY.
I'M GOING TO FOCUS ON WHAT WE DO
THROUGH NCRE.
SO AGAIN THERE'S TWO ASPECTS I
WANT TO TALK ABOUT.
THE SCHOLARS PROGRAM WHICH I'LL
TALK ABOUT AS WELL AS THE
CONFERENCE.
OUR CONFERENCE IS COMING UP IN A
MONTH AND THAT'S ON MY MIND AS A
COME HERE TODAY.
THE NATIVE CHILDREN'S RESEARCH
EXCHANGE SCHOLARS PROGRAM.
THIS IS A PICTURE OF OUR
GATHERING AND WE HAD 12 COHORTS
OF SCHOLARS WHEN WE ACCEPT OUR
MOST RECENT COHORT.
WHAT YOU SEE HERE ARE COHORTS 10
AND 11.
THIS IS A PICTURE OF US.
WE TRAVELED TO THE SANTA ANA
PUEBLO AT TAMAYA OWNED BY THE
SANTA ANA PUEBLO.
WE GATHERED FOR A WRITING
RETREAT AND HAD A CHANCE TO
CONNECT WITH LORENDA WHILE THERE
AND THIS IS AN EXAMPLE OF ALL
THE CONNECTIONS AMONG US.
AS A SHARED, NCRE SCHOLARS THE
CONFERENCE HAS BEEN FUNDED SINCE
2008 AND NCRE SCHOLARS HAS BEEN
FUNDED SINCE 2012 BY NIDA.
WHAT YOU SEE HERE ON THE TIME
LINE WAS IT WAS INITIALLY FUNDED
BY SOME TWO-YEAR CONTRACTS.
YOU CAN SEE HOW MANY SCHOLARS
EACH OF THOSE FIRST THREE
CONTRACTS FUNDED AND THEN WE GOT
A GRANT, AN R25 AND THAT WAS
FUNDED IN 2019 A FIVE-YEAR
GRANT.
WE HAVE ACCEPTED FOUR SCHOLARS
EACH YEAR.
BY THE TIME WE'RE DONE WE WILL
HAVE TRAINED 35 SCHOLARS, 34 OF
WHOM ARE INDIGENOUS.
AND IT'S TO SHOW WHO THE
SCHOLARS ARE.
THE MAJORITY ARE INDIGENOUS AND
ARE AMERICAN BEYOND.
THAT'S THE BLUE PART OF THE PIE
GRAPH AND ALASKAN NATIVE AND
NATIVE HAWAIIAN AND SUPPORT
ALLIED RESEARCHERS WHO HAVE
PARTNERED IN GOOD WAYS WITH
TRIBAL COMMUNITY AND DEDICATED
TO CAREERS IN SUPPORTING THE
HEALTH AND WELL BEING OF TRIBAL
COMMUNITIES THROUGH RESEARCH AS
ALLIES.
ON THE RIGHT YOU CAN SEE THE
TRAININGS AND HALF OUR SCHOLARS
ARE GRADUATE STUDENTS AT THE
TIME THEY ENTER THE PROGRAM AND
37% ARE EARLY CAREER SCHOLARS.
THEY MIGHT BE IN EARLY CAREER
FACULTY POSITIONS AND 30% ARE IN
POST DOCK POSITION.
WE TAKE A CAREER DEVELOPMENT
APPROACH.
YOU CAN IMAGINE THROUGH THE 35
SCHOLARS BY THE TIME WE'RE DONE
WITH THE CURRENT ROUND OF
FUNDING WE'LL HAVE TRAINED 35
TOTAL SCHOLARS THEY COME FROM
DIVERSE BACKGROUNDS AND THEY
HAVE DIVERSE INTERESTS AND DITCH
STAGES OF THEIR CAREERS AND WANT
TO FOCUS ON DIFFERENT
DEVELOPMENT PERIODS.
ALL OF WHAT UNITES ALL OF THEM
FROM FUNDING FROM NIDA IN SOME
WAY THEIR WORK TO ADDRESS
SUBSTANCE USE IN CHILDREN'S
DEVELOPMENT.
IT COULD BE RISK AND PROTECTIVE
FACTORS, INTERVENTION
DEVELOPMENT, TESTING
INTERVEN
INTERVENTIONS LOOKING AT THE
IMPACT OF PARENTAL OR FAMILIAL
SUBSTANCE USE IN CHILDREN'S
DEVELOPMENT BUT IN SOME WAY ALL
OF OUR SCHOLARS THEIR RESEARCH
FOCUSES ON SUBSTANCE USE AND
IMPACT ON NATIVE CHILDREN'S
DEVELOPMENT.
SO IN TAILORED CAREER
DEVELOPMENT APPROACH.
WE HAVE A COMMON SET OF
ACTIVITIES AND WHEN WE HAVE EACH
SCHOLAR HAS $13,000 TO USE
TOWARD TAILORED ACTIVITIES.
AND SO OUR COMMON ACTIVITIES
THOSE ARE CONFERENCES THAT ALL
SKAUL OR ATTEND DURING THEIR
TIME OF ACTIVE SUPPORT.
THAT'S THE SOCIETY FOR
PREVENTION RESEARCH AND
CHILDREN'S EXCHANGE CONFERENCE
IN FOUR WEEKS ALSO FUNDED BY
NIDA AND WE ALSO HAVE COURSE
WORK THAT THEY COMPLETE AND
THESE COURSES ARE TAUGHT BY MY
COLLEAGUE NANCY WHITESELL.
WE'RE MULTIPLE P.I.s ON THE
GRANT AND WE LEVERAGE THE
EXPERTISE IN DELIVERING COURSES
AND HAVE A COURSE ON GRANT
WRITING INCLUDING SEMINARS AND A
MOCK REVIEW AND RESPONDING TO
REVIEWS.
WE DELIVER ON RESPONSIBLE
CONDUCT ON RESEARCH WITH
AMERICAN CANADIAN AND NATIVE
HAWAIIAN COMMUNITIES WE HAVE
INTENSIVE WRITING RETREATS.
AGAIN THE PICTURE I OPENED UP
WITH IS A TIME WE GATHER FOR
WRITING RETREAT AND THEY MEET
WITH NANCY AND MYSELF ON A
REGULAR BASIS.
AND THEN WE DO VIRTUAL WRITING
WORKSHOPS AND THOSE ARE PEER-LED
TIMES FOR SCHOLARS TO SHARE
THEIR WRITING AND TO GET PEER
FEEDBACK ON THEIR WRITING.
WRITING IS AN ESSENTIAL PART OF
HAVING A RESEARCH CAREER.
THERE'S THE WRITING GRANTS AND
WRITING UP YOUR FINDINGS AND
DISSEMINATING THE INFORMATION
WITH COMMUNITIES AND WITH
ACADEMIC AUDIENCE.
WRITING IS AN IMPORTANT PART
WHATEVER WE DO IN SUPPORTING
THEM AND THEN THERE'S PEER
MENTORING.
I'LL TALK ABOUT THE NCRE STARS
PROGRAM.
IT STANDS FOR AND THOSE WHO HAVE
PROJECTS KNOW YOU HAVE TO ALWAYS
COME UP WITH CATCHY ACRONYMS SO
STARS, NANCY CAME UP WITH THAT
STANDING FOR STUDENTS THINKING
ABOUT RESEARCH CAREERS.
IF WE WANT TO GROW CAPACITY FOR
RESEARCH GRANTS AND OTHER
RESEARCH EFFORTS, A LOT OF THAT
WORK HAS TO START QUITE YOUNG
EVEN BEFORE HIGH SCHOOL YOU CAN
ARGUE BUT OUR PEER MENTORING
GOES DOWN TO HIGH SCHOOL.
AND THE TAILORED ANG TESTS ARE
ACTIVITIES EACH SCHOLAR CHOOSES
BASED ON THEIR VERY SPECIFIC
INTERESTS.
IT COULD INVOLVE RESEARCH
TRAINING GOING TO ADDITIONAL
CONFERENCES, VISITING MENTORS OR
USING SOME OF THEIR FUNDS TO
DIRECTLY SUPPORT THEIR RESEARCH.
IT COULD INVOLVE PARTICIPANT
PAYMENTS, IT COULD INVOLVE THE
PAYMENT OF CERTAIN ASSESSMENT
TOOLS, PEOPLE HAVE USED THE
MONEY TO HELP PAY PEOPLE TO HELP
THEM CODE, QUALITATIVE
INTERVIEWS, ANY NUMBER OF
THINGS.
THAT'S TARGETED TO THE TRAINING
PROGRAM.
AS A RESEARCHER WE LIKE
CONCEPTUAL MODELS AND LIKE
TAILORED ACTIVITIES AND WE HOPE
TO IMPACT AND GROW THE SCHOLARS
TECHNICAL EXPERTISE, CONTENT
EXPERTISE AND IMPORTANTLY THEIR
COMMUNITY -- THEIR SENSE OF
COMMUNITY AND CONNECTION.
AND THROUGH THAT WE HOPE TO
ACHIEVE AND ADDRESS WORKFORCE
CAPACITY.
I'M SURE YOU'RE ALL FAMILIAR
WITH THE NUMBERS THE VERY LOW
PERCENTAGE OF NIH GRANTS THAT GO
TO P.I.s WHO ARE THEMSELVES
NATIVE IS ABYSMALLY LOW.
THIS IS HOPING TO INCREASE THE
NUMBER OF NATIVE PEOPLE PREPARED
FOR AND COMPETITIVE FOR AND SET
UP TO SUCCESS IN GETTING NIH
GRANTS.
SOME EXAMPLES OF THE PIE CHART
AND TECHNICAL EXPERTISE WE'RE
TRYING TO ADDRESS, CONTENT AND
BUILDING CONNECT IN COMMUNITY SO
UNDER TECHNICAL EXPERTISE THAT'S
REALLY GETTING PEOPLE FAMILIAR
WITH WHAT ARE THE ALPHABET SOUP
OF DIFFERENT NIH GRANT
MECHANISMS.
KO1s, R01s, R34s, ALL THAT.
AND MAKING THE PROCESS LESS
DAUNTING.
THE GRANTSMANSHIP THERE'S AN
APPROACH AND WAY AND FORMULA, IF
YOU WILL, FOR WRITING RESEARCH
GRANTS.
AND WRITING, IT'S HARD FOR MANY
OF US WHETHER IT'S TIME -- IT'S
SOMETHING MANY OF US PUT AT THE
BOTTOM OF OUR LIST.
WE REALLY TRY TO BRING THAT TO
THE TOP OF PEOPLE'S LIST BECAUSE
IT'S SO CRITICAL FOR BUILDING A
RESEARCH CAREER AND GETTING
THOSE NIH GRANTS.
IN MATERIALS OF CONTENT
EXPERTISE, A LOT OF OUR SCHOLARS
ARE REALLY INTERESTED IN MIXED
METHODS, THE QUALITATIVE AND
QUANTITATIVE METHODS, INDIGENOUS
METHODOLOGIES.
CBPR AND HOW THEY GO ABOUT
BUILDING EARLY PARTNERSHIPS IS
SOMETHING EARLY CAREER SCHOLARS
ARE LOOKING FOR GUIDANCE HOW TO
DO THAT AND STRENGTH-BASED
RESEARCH AND TYPES OF EXPERTISE
IN THESE AREAS.
IN TERMS OF BUILDING CONNECTION
AND COMMUNITY, AGAIN, BUILDING
THE COMMUNITY PARTNERSHIPS,
ACCESSING CAREER OPPORTUNITIES.
A NUMBER OF OUR SCHOLARS THROUGH
THE NETWORK HAVE GONE ON TO
PROFESSOR AND ASSISTANT
PROFESSOR PROFESSIONS.
NAVIGATING THE ACADEMY AND
NAVIGATING AN ACADEMIC CAREER
AND BUILD NATIONAL PEER NETWORK.
THE SENSE OF CONNECTION AND
COMMUNITY IS REALLY FOUNDATIONAL
PART OF WHAT WE TRY TO DO THIS
IS A DEFINITION OF WORKFORCE
CAPACITY AND SOMETHING WHEN
KARINA WAS SHARING HER SLIDES
EARLIER THIS MORNING I BUILT ON
HOW DO WE DEFINE WORKFORCE
CAPACITY AND THIS IS A WORKING
DEFINITION.
I WOULD SAY WORKFORCE CAPACITY
IF WE'RE SUCCESSFUL IN DOING
THAT, WE WILL HAVE A
SUFFICIENTLY SIZED -- THERE'S
VERY FEW PEOPLE, AS YOU PROBABLY
ALL KNOW, WHO ARE PREPARED TO
WRITE AND OBTAIN AND IMPLEMENT
NIH TYPE GRANTS WHO ARE ALSO
NATIVE.
SO REALLY INCREASING THE SIZE,
THE NUMBER OF PRINCIPAL
INVESTIGATORS WHO ARE THEMSELVES
INDIGENOUS.
AND SUFFICIENTLY SIZED,
CULTURALLY INFORMED AND
REPRESENTATIVIVE BIOMEDICAL
SOCIAL AND BEHAVIORAL HEALTH
RESEARCH WORKFORCE.
THAT HONORS TRIBAL SOVEREIGNTY
AND WISDOM, LEVERAGE THE POWER
OF RESEARCH RELYING ON
SCIENTIFIC APPROACHES AND
PREPARED TO WORK IN BOTH
UNIVERSITY AND COMMUNITY-BASED
SETTING.
ALL TO SUPPORT COMMUNITY HEALTH
AND FLOURISHING IN PARTNERSHIP
WITH AMERICAN INDIAN AND ALASKAN
NATIVE COMMUNITIES THAT'S OUR
WORKING DEFINITION WHEN WE SAY
WORKFORCE CAPACITY, BIG PICTURE,
NORTH STAR, THIS IS WHAT WE'RE
LOOKING TOWARDS AND HOPING IN
SOME SMALL WAY TO ADDRESS.
WHEN WE TALK ABOUT WORKFORCE
CAPACITY AND I WORK IN SPACES IN
TRIBAL COMMUNITIES IT'S NOT JUST
THE SPACE WE'RE ALL IN TOGETHER
TODAY, THE SYSTEMS NEED TO
CHANGE TOO.
IT'S JUST ABOUT INDIVIDUAL
CAPACITY AND TRIBAL COMMUNITY
CAPACITY.
IT'S ABOUT SYSTEM CAPACITY AND
HERE WE'RE TALKING ABOUT THE NIH
SYSTEM THAT THE SYSTEM IS
ALIGNED WITH THE WAYS IN WHICH
INDIGENOUS SCHOLARS, INDIGENOUS
COMMUNITIES WANT TO AND NEED TO
DO RESEARCH.
THAT DOESN'T FREQUENTLY DOES NOT
ALIN WITH THE POLICIES,
PROCEDURES AND PROTOCOLS THAT
VARIOUS FUNDING AGENCIES HAVE
SET UP OR EVEN UNIVERSITY
SYSTEMS.
WHEN WE TALK ABOUT WORKFORCE
CAPACITY THERE'S TWO SIDES TO
THAT COIN.
SO I THINK THE INITIATIVE SHARED
THIS MORNING, THE N CREW PROGRAM
IS BE AN EXCITING AND INNOVATIVE
WAY FORWARD AND I WAS EXCITING
TO HEAR ABOUT THAT AND REFLECT
THE SYSTEM ADAPTING AND
INCREASING ITS CAPACITY AND
SERVE THE NEEDS OF TRIBAL
COMMUNITIES.
IN TERMS OF OUR SCHOLARS AND
WHERE ARE THEY NOW?
SOME ARE STILL IN THEIR DOCTORAL
PROGRAMS, SOME ARE IN POST
POSTDOCTORRAL PROGRAMS AND THE
REST OF MY KEY GOT CUT OFF.
ONE IS AN ACADEMIC TEACHING
POSITION AND THE 10% ARE OTHER
POSITIONS.
I JUST WANTED TO CALL SOMETHING
OUT ABOUT THE OTHER POSITIONS
THEY'VE MOVED ON TO AND AMONG
THOSE NOT STILL IN A DOCTORAL
PROGRAM ABOUT 58% OF THOSE IN A
POST-DOCTORAL POSITION OR BEYOND
HAD SOME TYPE OF NIH SUPPORT
WHETHER AS A P.I. OR CO-P.I. OR
OTHER SUPPORT.
IN TERMS OF OUR OTHER, IN THIS
EXAMPLE THEY MOVED ON TO THE
PRESIDENT OF THE OVER ALL TRIBE.
I DIDN'T KNOW I'D SEE YOU HERE
TODAY.
I WAS HAPPY TO SEE YOU.
I WANTED TO GIVE A SHOUT OUT TO
THE INDIVIDUALS INVOLVED IN AND
PART OF OUR NCRE PROGRAM.
YOU'RE ALL PART OF THE FAMILY
SHOULD YOU CHOOSE TO BE PART OF
THE FAMILY.
ALICIA WAS IN OUR FIRST COHORT
AND JESZ CA WAS IN COHORT 8 AND
A MENTOR TO OUR MOST RECENT
SCHOLARS, CAS ARMSTRONG AND
NICOLE REED AND TERESA BROCKE A
RECENT SCHOLAR AS WELL AND TO
OUR PROGRAM OFFICIAL WHO HAS
BEEN WITH US FROM THE BEGINNING
AND THE FIRST MEET WAS TO GET
THE CONFERENCE STARTED AND AS A
YOGA TEACHER ONCE SAID, EVERY
ACTION BEGINS WITH A THOUGHT.
I REMEMBER THE INITIAL MOMENTS
THAT WE HAD THIS IDEA FOR NCRE
AND HERE WE ARE 14 YEARS LATER
FROM WHEN THE CONFERENCE FIRST
STARTED.
MY FIRST PRESENTATION WERE LIKE
THE KINDS YOU HAVE TO PRINTOUT
AND PUT ON THE PROJECTOR SO YOU
COULDN'T CHANGE ANYTHING.
WITH POWE POINT -- WITH POWER
POINT I COULD CHANGE IT TO THE
LAST MINUTE AND I WANTED TO
HIGHLIGHT OUR SCHOLARS WHO HAVE
GONE ON TO BE NIH-FUNDED
PRINCIPAL INVESTIGATORS.
AMANDA IS A POSTDOC AT NORTHERN
ARIZONA UNIVERSITY AND HAS A
K-99 AWARD.
EVAN WHITE IS SHAWNEE AND A
PRINCIPAL INVESTIGATOR.
I DO EARLY CHILDHOOD DEVELOPMENT
RESEARCH AND THERE'S FEW WHO DO
THAT AND FEWER THAT DO WHAT EVAN
DOES AND HE'S A NEURAL SCIENTIST
AND TRIBAL LEADER.
AND KATIE AND JERREED HAVE AN
R31 TOGETHER.
WE'RE EXCITED FOR THEM.
SO THE NATIVE CHILDREN'S -- I
PUT IN A LOT OF PICTURES.
YOU GET THE GIST.
THE NATIVE CHILDREN'S RESEARCH
EXCHANGE CONFERENCE WE'VE BEEN
FUNDED SINCE 2008.
WE'VE HAD 14 CONFERENCES AND HAD
ABOUT 100 PARTICIPANTS EACH YEAR
AND THERE'S ABOUT 400 MEMBERS IN
OUR LIST SERVE.
WHEN YOU THINK OF THE PIE CHART
IN THE COMMUNITY AND CONNECTION
THE NCRE NETWORK IS A HOME FOR
OUR SCHOLARS AND A REUNION WHEN
WE COME TOGETHER IN SEPTEMBER IN
DENVER.
I DO A LOT OF WORK TO CREATE THE
STRUCTURE FOR OUR GATHERING BUT
ALL THE PARTICIPANTS WHO COME
CREATE THE MAGIC.
IT'S WONDERFUL TO SEE ALL THE
CONNECTIONS MADE AND GROW OUT OF
THAT.
IT'S EVERY OTHER YEAR AT THIS
POINT.
YOU'LL HAVE A COPPEE OF THE
SLIDES WE FOCUSSED ON IN THE
LAST FEW YEARS.
YOU CAN GO TO OUR WEBSITE,
NCRENETWORK.org FROM A MEETING
WE FEATURE NCRE SCHOLARS' WORK
AND THE STARS PROGRAM THIS IS TO
JOIN OUR KNIT WORK AND ACCESS
MENTORING.
AND I WANTED TO HIGHLIGHT THE
NCRE STAR IN 2014 WHEN HE WAS IN
HIGH SCHOOL.
HE'S GONE ON AND GOT HIS
UNDERGRADUATE DEGREE AT YALE AND
WORKED ON TERESA BROCKE'S
PROJECT AND WILL BE BACK THIS
YEAR BRINGING A HIGH SCHOOL
STUDENT AS WELL.
IT'S GREAT TO SEE THE CIRCLE
CONTINUE.
RELATIONSHIPS BUILT AND
SUSTAINED OVER TIME IS AT THE
HEART OF WHAT WE'RE BLESSED TO
GET TO DO.
THIS IS A PICK TIRE OF MY DEAR
FRIEND.
WHEN I WAS JUST STARTING OUT AND
EARLY CAREER I CALLED HER UP AND
ASKED HER IF SHE WAS INTERESTED
IN PARTNERING ON A RESEARCH
PROJECT AND HAD THE TRUST AND
KINDNESS AND GENEROSITY TO SAY
YES AND WE MAINTAINED FRIENDSHIP
OVER THE YEARS AND THE WORK I
STARTED WAY BACK WHEN HAS LED TO
THE WORK I DO THROUGH THE TRIBAL
EARLY CHILDHOOD RESEARCH CENTER
GOING ON 20 YEARS AND A LONG
LINE OF RESEARCH FOCUSSED ON
CHOICES ON A C.D.C. INTERVENTION
ADAPTED OR PREVENTION AND WANTED
TO GIVE A SHOUT OUT TO MY DEAR
FRIEND AND USE THE PICTURE TO
HIGHLIGHT HOW IMPORTANT OUR
RELATIONSHIPS ARE WITH ONE
ANOTHER.
THIS IS WHERE TO FIND US AND
SOMEBODY SHOWED ME THIS MORNING
AND YOU CAN SCAN THIS QR CODE
AND GET MY CONTACT INFORMATION.
THANK YOU VERY MUCH.
>>THANK YOU.
WE'LL SAVE THE QUESTIONS AFTER
THE PANELISTS HAVE HAD A CHANCE
TO SHARE THEIR PRESENTATIONS.
HOLD YOUR THOUGHTS AND WRITE
THEM DOWN.
WE'LL GO ON TO THE NEXT
PRESENTER WHO IS DR. JESSICA
SANIGAQ ULLRICH.
YOU'RE ASSIST AND THE PROFESSOR
AT WASHINGTON STATE UNIVERSITY
AND GOING TO BE TALKING ABOUT
THE OUTREACH PROGRAM.
[SPEAKING NON-ENGLISH]
MY ANCESTORS ARE FROM THE
VILLAGE OF WALES AND I'M
GRATEFUL TO COME AND SHARE WITH
YOU A LITTLE BIT ABOUT MY
PROCESS AND MY JOURNEY TO BEING
A SCHOLAR AND A GOAL OF GOING
AFTER AN NIH RO1 A COUPLE YEARS.
THANK YOU FOR THE INVITATION.
I LOVE HOW ALL OF US HAVE TO
SHARE WHO WE ARE WITH PHOTOS OF
OUR FAMILY AND COMMUNITY.
THIS PICTURE IN THE TOP LEFT
CORNER, THAT'S MY GREAT
GRANDMOTHER AND I'M NAMED AFTER
ONE OF THESE WOMEN WITH THE SAME
BIRTH MARK AND MY NOM'S NAME WAS
KATHY AND EVERYONE CALLED HER
PUNKY AND THAT'S MY LITTLE
SISTER.
THIS MIDDLE PHOTO IS A PICTURE
OF MY TWO TEEN AGE DAUGHTERS AND
I'M DUCKING OUT TOMORROW BECAUSE
IT'S MY YOUNGEST DAUGHTER'S
BIRTHDAY AND I'M FLYING OUT FOR
THAT AND I'M RESIDING ON THE
LANDS OF THE SPOKANE PEOPLE AND
I'M SO GRATEFUL TO BE A TRIBAL
IMMIGRANT THERE.
I COME FROM A BEAUTIFUL
COMMUNITY OF STRONG WOMEN.
MY PARTNER, I WOULDN'T HAVE BEEN
ABLE TO GET THROUGH ANYTHING,
THE Ph.D. PROGRAM AT UNIVERSITY
OF WASHINGTON WITHOUT HIM AND
I'VE ALWAYS LOVED THE MOUNTAIN
AND OCEAN AND FIRST TIME I
STEPPED FOOT ON THE LANDS OF THE
NATIVE VILLAGE OF WALES I
FINALLY UNDERSTOOD WHY THAT IS
BECAUSE THE BEAUTY WAS AROUND
THE COMMUNITY.
I'VE HAD THE PRIVILEGE OF BEING
THERE AND VISITING AND GOING TO
DANCE FESTIVALS AND RECONNECTING
AND GIVING THAT TO MY CHILDREN.
THAT'S A LITTLE BIT OF MY
BACKGROUND.
I WANTED TO SHARE WHAT I LEARN
FROM THIS NIH STUDY HERE FUNDED
BY THE NATIONAL INSTITUTES OF
MENTAL HEALTH.
IT'S AN R01 FOCUSSED ON SUICIDE
CONNECTION AND STUDYING
PROTECTIVE FACTORS.
PART OF MY BACKGROUND WITH THIS
IN GETTING CONNECTED WITH THE
PROJECT I WAS STUDYING
INDIGENOUS WELL BEING DOING A
LITERATURE REVIEW AND CAME
ACROSS AN ARTICLE THAT DR. JAMES
ALLEN CO-AUTHORED ON
CONNECTEDNESS.
WHEN I CAME ACROSS THAT TERM,
THAT CONCEPT IT WAS DEFINED AS
THE INTERRELATED WELFARE OF AN
INDIVIDUAL, FAMILY, COMMUNITY IN
THE EARTH.
ONCE I SAW THE CONCEPT DEFINED
IN THAT WAY I KNEW THAT WAS IT
AND WHAT I WANTED TO STUDY MORE
AND WHAT I FELT WAS SO LACKING
IN MANY SYSTEMS AND
INTERVENTIONS AND POLICIES AND
PRACTICES.
I WANTED TO HONE IN ON THAT AND
CONNECTED WITH THE NATIVE CHILD
RESEARCH EXCHANGE CONFERENCE AND
HAVE FOLLOW-UP MEETINGS TO FIND
OUT ABOUT THE FUNDED STUDY HE
WAS CO-P.I. ON AND I GOT INVITED
TO BE ON THE RESEARCH STEERING
COMMITTEE AND AS I WAS
PROGRESSING THROUGH MY DOCTORAL
PROGRAM AND ON THE RESEARCH
STEERING COMMITTEE I WAS ABLE TO
CO-AUTHOR A GRANT PROPOSAL FOR
AN ADMINISTRATIVE SUPPLEMENT TO
FOCUS ON DIGITAL USE STORY
TELLING AND HEARING THEIR
PERSPECTIVES OF HOW COMMUNITIES
SUPPORTED THEIR WELL BEING AND
NOW EVERY SINCE THEN PART OF THE
INTERNAL LEADERSHIP TEAM.
IT'S PART OF WHAT I WANTED TO
SHARE WITH YOU, WHAT I LEARNED
THROUGH THE JOURNEY AND PROCESS
OF BEING A GRADUATE STUDENT AND
NOW AN EARLY CAREER SCHOLAR.
ONE OF THE THINGS I APPRECIATED
ABOUT THE STUDY WAS THERE WAS AN
INTENTIONAL FOCUS TO INCLUDE AND
BUILD INDIGENOUS LEADERSHIP AT
ALL LEVELS.
AND THEY FOCUSSED ON WELL-BEING
AND PREVENTING SUICIDE TO THE
LEADERSHIP TEAM AND THEN THE USE
STEERING COMMITTEE.
THERE'S SO MANY COMMITTEES THAT
GUIDE THIS WORK AND IT'S REALLY
DONE IN A GOOD WAY AND NOT
LEAVING EVERYBODY OUT SO WE
FOCUS ON THE STRENGTHS AND
REMAIN FOCUSSED ON COMMUNITY
LEVELS VERSUS INDIVIDUAL LEVELS.
THERE'S BEEN A TENDENCY TO FOCUS
ON INDIVIDUALS BUT WE KNOW IN
MANY INDIGENOUS WORLD VIEWS THE
COLLECTIVE, THE COMMUNITY IS
WHERE WE NEED TO FOCUS AS WELL.
THIS ASPECT WHERE THE PROCESS IS
AS IMPORTANT AS THE OUTCOMES.
THAT IS THE MOST IMPORTANT THING
I LEARNED FROM THE WHOLE PROJECT
THAT I WOULDN'T HAVE LEARNED
FROM STUDYING BOOKS.
I HAD TO HAVE THAT ON THE JOB
TRAINING SO TO SPEAK TO BE
INVOLVED WITH THE WHOLE RESEARCH
PROJECT TO UNDERSTAND THAT THE
PROCESS IS ALSO AN OUTCOME AND
THAT I AM PART OF THAT OUTCOME
AS I AM LEARNING AND BEING
TRANSFORMED BY THE RESEARCH AS
WELL.
WE HAD MONTHLY MEETINGS WE
ALWAYS STARTED WITH A CHECK IN
FIRST AND HEARING WHAT'S GOING
ON IN PEOPLE'S COMMUNITIES
AROUND REGIONS OF THE STATE.
WE WERE BEING MINDFUL OF GRIEF
AND LOSS CONCERNS THESE WERE ALL
THE INTENTIONAL, RELATIONAL
PROCESSES I WAS ABLE TO TEASE
OUT AND SEE IT WAS BUILD IN.
IT'S PART THEIR DOING THE WORK.
IN TERMS OF THE COMMUNITY-BASED
ASPECTS WE AS RESEARCHERS ARE
NOT SEPARATE FROM THE COMMUNITY.
ESPECIALLY AS AN INDIGENOUS
RESEARCHER WORKING ON INDIGENOUS
RELATED ISSUES WITH MY
INDIGENOUS COMMUNITIES, IT WAS
EVEN MORE SO LIKE WE'RE NOT
SEPARATE FROM I THINK SOMETIMES
WE CREATE THESE FALSE
DICHOTOMIES OR AN US AND THEM
MENTALITY BUT THAT IS NOT THE
CASE.
AS WE'RE DOING THE WORK I'M
HELPING THE COMMUNITY HEAL AND
AS I'M HEALING I HELP MY
COMMUNITY HEAL AS I HEARD IN
PREVIOUS PRESENTATIONS.
THE OTHER ELEMENT THAT HELPED
THE PROJECT BEING SUCCESSFUL IS
THAT AND THEY HAD A TON OF WORK
EXPERIENCE AND TIME IN THE
COMMUNITY TO BUILD THE
RELATIONSHIPS SO THE COMMUNITY
INVITED THEM AND SAID WE HAVE
THIS NEED.
CAN YOU PLEASE DO THIS RESEARCH
WITH US ABOUT WHAT CAN WE DO?
THAT'S A SIGN THAT SHOULD BE A
MEASURE OF SUCCESS.
AND THE RELATIONSHIP PROCESSES
WAS PART OF THAT EQUATION.
PART OF THE PROJECT INVOLVED
COLLABORATIVE HUKZE IIE IIVE HU
GATHERING IN FAIRBANKS, JUNO,
ANCHORAGE.
WE BROUGHT IN KEY NOTE SPEAKERS.
IT'S LIKE HOLDING A CONFERENCE
IN A SENSE BUT WE'RE ALSO
DELIVERING LIVE DATA,
INFORMATION AND RECEIVING
FEEDBACK ON WHAT'S WORKING AND
NOT WORKING.
IT WAS AN AMAZING COMPONENT OF
THIS PROGRAM AND WE WERE
DISAPPOINTED AND HEARD AND FOUND
OUT COLLABORATIVE HUBS WERE NO
LONGER GOING TO BE FUNDED IN THE
FUTURE FOR NIH BUT I HOPE THAT
THAT COULD BE RECONSIDERED.
THIS IS PART OF THE PROCESS IS
AS IMPORTANT AS THE OUTCOMES.
THIS IS WHERE WE DON'T WANT TO
WAIT FIVE YEARS UNTIL A GRANT IS
FINISHED TO DISSEMINATE THE
FINDINGS.
WE WANT TO DO IT AS WE GO ALONG
AND THIS IS PART OF WHAT GAVE
THAT OPPORTUNITY.
I LEARNED SO MUCH ABOUT ADAPTING
THE PLAN GOING WITH THE FLOW.
SOME WERE CREATING DIGITAL
STORIES AND SOME WERE SHY
SAYING, WE'RE NOT GOING HAVE OUR
VOICE RECORDED BUT I'LL WRITE UP
AN ESSAY AND DO A PHOTO VOICE
THING AND IT WAS SUCCESSFUL AND
WE HEARD FROM ANOTHER TEACHER IN
THE SCHOOL, SHE SAID I'M GOING
TO BRING MY WHOLE CLASS TO COME
TO THIS PORTION OF THE WALL IN
THE HALLWAY BY THE CAFETERIA AND
SHE SAID WE'RE GOING TO READ
THEIR STORIES.
LIKE THIS IS DOING GOOD BEYOND
WORKING WITH THE YOUNG PEOPLE IS
MULTIPLE GRADE LEVELS EXPOSED TO
THIS GOOD WORK.
AND HOW WE FRAME THIS IN THE
NARRATIVE MATTERS.
I WAS LISTENING TO SOMEONE
PRESENT ON RESEARCH THE OTHER
DAY AND IT CAME FROM THAT
DEFICIT NARRATIVE AND TALKING
ABOUT HORRIBLE TRAUMAS IN A
NONCHALANT WAYS AND I THOUGHT
THIS IS NOT THE WAY TO DO IT AND
HAD RELATIONAL PROCESSES WHERE
WE CAN GET THE FEEDBACK BEFORE
DOING SOMETHING LIKE THAT.
THIS SAY PHOTO WHEN WE HAD THE
YOUNG PEOPLE SHARE THE DIGITAL
STORIES WITH THE WHOLE COMMUNITY
AND THE COMMUNITY SHOWED UP.
WE LEARNED HOW THE NARRATIVE AND
THE WAY WE TALK ABOUT SUICIDE
PREVENTION AND STRENGTHS HAS A
COLLECTIVE IMPACT.
WE RECEIVED COLLABORATIVE
FEEDBACK THROUGH THE HUBS ALONG
THE WAY.
THESE ARE SOME OF THE LESSONS
LEARNED THIS IS WHAT IT TAKES.
YOU NEED A GOOD INTENTION.
YOU SHOULD STEP BACK AND
QUESTION AND THINK ABOUT WHAT IS
YOUR THEORY OF CHANGE AND YOUR
INTENTION OF DOING THIS WORK I
HEARD SAY FEDERAL FUNDS DON'T
COVER FOOD BUT IT'S CENTRAL AND
VITAL IN ANY COMMUNITY.
LET'S GET THE FOOD FUNDED.
IF WE CAN ADVOCATE FOR AND MAKE
THE CHANGES WITH HOW INCENTIVES
AND HONORARIUMS ARE BEING
PROVIDED AND PAY FOR TRAVEL NOT
JUST FOR A MOTHER BUT THEIR
CHILDREN AS WELL.
WE HAVE TO THINK OF TIME LINES
AND FUNDING AND LIKE YOU'RE NOT
JUST FUND FIVE-YEAR PROJECT BUT
A CAREER FOR MANY SCHOLARS.
THAT'S WHAT SHE GOT.
THAT WAS A 23-YEAR-OLD GRANT AND
THINK BROADLY FOR FUTURE
GENERATIONS.
I WAS TALKING ABOUT THE WING
STAN OF OUR ANCESTORS.
BRINGING THAT GOOD ENERGY,
FOLLOWING THROUGH WITH WHAT YOU
SAY YOU'RE GOING TO DO, HAVING
TRUSTING COMMITTED
RELATIONSHIPS, SHOWING UP,
HAVING THAT DETERMINATION I WAS
HEARING ALL OF THAT SPOKEN ABOUT
EARLIER.
WE HAVE SYSTEMS AND POLICY AND
PRACTICES COMPOUNDING TRAUMA FOR
CHILDREN AND FAMILIES RATHER
THAN ALLEVIATING IT.
THIS WAS ANOTHER THING I
LEARNED.
WITH THAT I'LL SAY I'M GRATEFUL
FOR THE YOUNG PEOPLE ELDERS AND
COMMUNITY MEMBERS WHO SAID YOU
HAVE TO INCORPORATE CEREMONY IN
EVERYTHING YOU DO AND WE DID
THROUGH RESEARCH AND SONG AND
FOOD AND NAMING CEREMONY TO AND
DIPPING CEREMONY IN THE OCEAN
AND THAT MADE ALL THE
DIFFERENCE.
THAT'S WHY THE PROCESS IS
IMPORTANT AS THE OUTCOME.
AND MAY YOU ALL GO LIVE AND BE
WELL.
>>OUR NEXT PRESENTER IS
DR. TERESA BROCKE ASSISTANT
PROFESSOR WITH JOHNS HOPKINS
SCHOOL OF NURSING AND ON
PATHWAYS TO WELLNESS AND
RESILIENCE TO INDIGENOUS YOUTH A
MULTI-LEVEL APPROACH TO SUICIDE
PREVENTION AND RESEARCH ACROSS
THE LIFE SPAN.
>>CAN YOU HEAR ME OKAY.
THANK YOU FOR THE WORK YOU DO.
IT'S VERY IMPORTANT ROLE I'M
GLAD TO SHARE SOME OF THE WORK
WE'RE DOING.
I WORK WITH TWO COMMUNITIES OVER
A 10-YEAR PARTNERSHIP IN THE
TRIBES WHERE WE'RE ENROLLING FOR
A RANDOMIZED CONTROL TRIAL.
THE WORK I'LL TALK ABOUT TODAY
IS THE WORK WITH THE TRIBES.
OUR WORK IS FOR THE INSTITUTES
FROM THE NATIONAL DISORDERS AND
STROKE AND GENERAL MEDICAL
SCIENCES AND NATIONAL INSTITUTE
OF NURSING RESEARCH AND THE
CHARITABLE AND SPENCER
FOUNDATIONS.
YOU CAN SEE BETWEEN 2005 AND
2020, AND YOU SEE THE DIFFERENCE
IN SUICIDE OUTCOMES BETWEEN
AMERICAN NATIVE AND ALASKAN
NATIVE AND OTHER GROUPS BUT YOU
CAN ALSO SEE THAT GAP IS
WIDENING OVER THAT PERIOD.
THIS IS HEALTH DISPARITIES.
SO SOCIAL DETERMINATES OF HEALTH
ARE AFFECTED BY ARE WE LIVE.
THIS IS REPRESENTATIVE OF THE
IMPACT OF SOCIAL DETERMINATES OF
HEALTH.
HERE WE CAN SEE A SIGNIFICANT
DIFFERENCE IN OVER ALL SUICIDE
RATES BETWEEN THE NATIONAL IHS
RATE AND U.S. RATE HOWEVER, WHEN
WE DISAGGREGATE DATA IT TELLS A
DIFFERENT STORY.
THERE'S A SIGNIFICANT DIFFERENCE
DEPENDENT ON WHERE YOU LIVE.
ONE OF THE MORE SIGNIFICANT
SOCIAL DETERMINATES OF HEALTH IS
POVERTY YOU CAN FIND
CONCENTRATED POVERTY OR WORSE
HEALTH OUTCOMES AND EARLY DEATH
AND INCREASED MORBIDITY AND
MORTALITY AND HIGHER RATES OF
SUICIDE.
THIS ARE THINGS TO CONSIDER IN
ORDER TO ADEQUATELY HAVE AN
IMPACT ON SUICIDE.
WE NEED TO CONSIDER THE
DIFFERENCES IN OUTCOMES TO
SUICIDE RATES.
AGAIN, I'M GOING TO TALK ABOUT
THE WORK WE DO, TALK WITH YOU
ABOUT THE WORK YOU DO IN RURAL
MONTANA.
THERE'S OVER A 10-YEAR
SCHOLARSHIP WITH THE TRIBES AND
JUST AS WE WERE GETTING TO READY
TO LAUNCH OUR RANDOMIZED CONTROL
TRIAL, MY OWN COMMUNITY
EXPERIENCED A SUICIDE CLUSTER.
THE TRIBAL LEADERSHIP DECLARED A
STATE OF EMERGENCY AFTER THREE
YOUTH SUICIDE OCCURRED IN ONE
MONTH PERIOD OF TIME.
I LOST MY BABY NEPHEW DURING
THAT TIME AND ALSO LOST MY FIRST
AND SECOND COUSINS.
I HAVE NUMEROUS OF THEM.
WE SHIFTED SOME ENERGY AND FOCUS
TO HELP SUPPORT MY COMMUNITY AND
IT WAS ESTABLISHED IN 1885 AND
IS HOME TO THE COMBINED TRIBES
COMPRISED OF ABOUT 7,000
MEMBERS.
THIS IS OUR -- WE ADAPTED THE
SOCIAL ECOLOGICAL MODEL TOGETHER
WITH OUR TRIBAL ADVISORY BOARD.
THESE HIGHLIGHT NOT ONLY THE
RISK BUT THE PROTECTIVE FACTORS.
BASED ON OUR COMMUNITY, FAMILY
AND INDIVIDUAL.
WE USED THE CONCEPTUAL MODEL TO
DRAW OR FACTORS OR OUR SUICIDE
STUDY.
SO SINCE 2019 THIS IS OUR
ACTIVITIES WE'VE DONE.
ONE OF THE FIRST THINGS THAT WE
DO IS WE MEET WITH TRIBAL
LEADERS AND FORMALIZE OUR
COLLABORATION WITH PARTNERSHIP
AND START EXPLORING FUNDING
OPPORTUNITIES TOGETHER BEFORE WE
APPLY FOR FUNDING WE GET
AUTHORIZATION FROM TRIBAL LEAD
TO DO THAT.
WE GOT SOME FUNDING FROM NIH AND
THE FOUNDATIONS IN 2021.
WE STARTED A MIXED METHODS
SUICIDE STUDY AND WE FOLLOWED
YOUTH AND ADULTS AND WE
CONDUCTED A SURVEY WITH 200
YOUTH WE BEGAN OUR DATA
COLLECTION WITH A SWEPT FOR ALL
DATA COLLECTORS.
WE WANTED TO -- SUICIDE IS A
VERY DIFFICULT TOPIC TO STUDY.
THERE'S CONCERNS OVER SAFETY.
WE WANT TO MAKE SURE WE'RE
ALIGNED AND PROTECTED OUR
PARTICIPANTS AS WELL AS DATA
COLLECTORS AND WE HAD THANK YOUS
AS WELL.
THIS WAS 2022 AND THEN WE
STARTED DEVELOPING THE
BEHAVIORAL MENTAL HEALTH AND
WELL-BEING IN INDIGENOUS
COMMUNITIES CERTIFICATE PROGRAM.
AND WE ENROLLED IN THE YOUNG
MEDICINE MOVEMENT AND RISE UP.
I'M GOING TO MOVE FORWARD.
LET ME KNOW LATER IF YOU
QUESTIONS ABOUT THAT THE WORK
AROUND SUICIDE RATES IS IN
NURSING CAPACITY AND YOU
UNDERSTAND AND TRYING TO
IDENTIFY SUSTAINABLE AND REDUCE
DEEP ROOTED DISPARITIES IN
MENTAL HEALTH AND SUBSTANCES AND
PRE CONVENIENCE RELATED WORK AND
RESEARCH IN NURSING CAPACITY.
THESE ARE THE AIMS OF OUR
SUICIDE CLUSTER.
WE'RE NOT ONLY LOOKING AT THE
IMPACT OF SOCIAL ENVIRONMENT
EITHER CONTRIBUTES TO OR
PROTECTS AGAINST YOUTH SUICIDE.
WE WANT TO DETERMINE HOW
INDIVIDUAL RISK OF PROTECTIVE
FACTORS IMPACT SUICIDE ATTEMPTS,
IDEATION AND DEPRESSION AND THEN
WE WANT TO IDENTIFY COMMUNITY
AND CULTURAL RESOURCES FOR
MITIGATING SUICIDE AND FOR
IDENTIFYING -- AND TWO OF THE
FIRST THINGS WE'LL DO ONCE WE'RE
DONE WITH DATA ANALYSIS IS
CREATE POST-INTERVENTIONS FOR
THOSE WHO LOST A LOVED ONE TO
SUICIDE.
MY APPROACH TO SUICIDE RESEARCH
HAS CHANGED SIGNIFICANTLY.
SO LOSING MY NEPHEW TO SEE MY
SISTERS GO THROUGH THAT
EXPERIENCE, WE DO NOT HAVE ANY
SUPPORT FOR THE LOSS OF A LOVED
ONE TO A SUICIDE AND WE'LL
DEVELOP INTERVENTIONS FOR THAT.
THE OTHER THING WE'LL DO IS
CREATE A SUICIDE CLUSTER
RESPONSE PLAN LOOKING BACK AT
THE DATA YOU CAN ACTUALLY SEE
THE RISK INCREASING UP TO THE
CLUSTER.
SO IF WE WOULD HAVE HAD THAT
HANDY SO WE CAN RESPOND QUICKER,
I THINK IT WOULD HAVE AN IMPACT
ON SUICIDES DURING THAT TIME.
THIS IS FUNDED BY NARCH AND IT'S
AROUND THE TRAINING TRAINING
CORPS.
THERE'S TWO RESEARCH PROJECTS
SUBMITTED WITH THIS.
ONE WAS FOR THE SUICIDE STATING
SUICIDE WAS NOT FUNDED HOWEVER,
WE DID GET FUNDED FROM THE DOAT
FOUNDATION AND THE EITHER DIDN'T
GET FUNDED SO WE HAVE A TRAINING
CORPS AND LOOKING AT HEALTH
LEADER PROGRAM AND FOR NURSES
WORKING IN NATIVE AMERICAN
COMMUNITIES WHICH HAS NOW BEEN
EXPANDED TO INCLUDE ASSOCIATE
DEGREE NURSES, COMMUNITY HEALTH
WORKERS AND OTHER PROVIDERS
THAT'S THE CERTIFICATE PROGRAM
I'LL TALK MORE ABOUT.
THIS IS A NINE-WEEK SUMMER
PROGRAM.
THEY COME TO BALTIMORE FOR
ORIENTATION AND RETURN TO THE
COMMUNITY, WORK ON A PROJECT AND
THEY ALSO TAKE COURSES TO
KENNEDY KRIEGER AND COME TO
ATLANTA TO PRESENT THEIR POSTER
AT THE END OF THE SUMMER.
THIS YEAR WE HAD FIVE STUDENTS
HAVING ATTENDED IS THE SYMPOSIUM
IN ATLANTA.
ACES AND THE ANNUAL BIOMEDICAL
RESEARCH CONFERENCE FOR
MINORITIZED STUDENTS.
THIS IS A COLLABORATION AND THIS
IS OUR CERTIFICATE PROGRAM.
THE FIRST WE WENT TO WAS THE
NURSES.
IT WAS A TEAM OF PUBLIC HEALTH
NURSE DO GREAT WORK IN THE
COMMUNITY.
THEY REPORTED TO US 95% TO 98%
ARE RELATED TO MENTAL HEALTH BUT
DO NOT HAVE ENOUGH TO ADDRESS
THE NEEDS.
THIS IS TO ADDRESS THE MENTAL
HEALTH TREATMENT GAP IN THE
COMMUNITY.
THERE WAS A VACANT POSITION FOR
20 YEARS.
YOU CANNOT ADEQUATELY RESPOND TO
A SUICIDE CLUSTER IT ENSURES
CONGRUENCE WITH THE CULTURE
VALUES OF COMMUNITIES AND
ADVANCING NOT ONLY HEALTH BUT
SOCIAL AND ECONOMIC OUTCOMES SO
IT WAS IMPORTANT TO TAKE A
MULTI-LEVEL INNOVATIVE APPROACH
AND CRITICAL TO THIS IS ACCESS
TO MENTAL HEALTH TREATMENT TO
IMPROVE ACCESS TO TRAINING AND
TRAINING NURSES WHO WILL BE ABLE
TO DO THIS COMMUNITY HEALTH
WORKERS AND OTHER PROVIDERS AS
WELL PARTICULARLY IN RURAL AND
REMOTE SETTINGS.
THE YOUNG MEDICINE MOVEMENT IS
OUR PATHWAY TO NURSING AND
PUBLIC HEALTH AND STEM FOR
A'ANIIININ SCHOLARS TO BECOME
NURSES, PUBLIC HEALTH
PRACTITIONERS OR TO PURSUE
CAREERS IN STEM DISCIPLINES.
THIS IS OUR FIRST YEAR DOING
THIS.
THIS IS OUR FIRST COHORT.
NOT ONLY DO THEY RECEIVE A
SEVEN-WEEK CURRICULUM IT'S ALL
EMBEDDED WITHIN CULTURES IN
EVERY ASPECT OF WHAT WE DO AND
THIS IS THIS YEAR.
THE CURRICULUM INCLUDES CAREER
DEVELOPMENT AND PLANNING FOR THE
FUTURE A WEEK OF CHEMISTRY AND
BIOLOGY AND NEUROSCIENCE AND
NURSING, PUBLIC HEALTH OR
BUILDING RESILIENCE AND THE LAST
WEEK IS PLANNING FOR SUCCESS
THROUGHOUT THE SUMMER PROGRAM,
SCHOLARS WORK ON A PROJECT AND
WE INVITE THE COMMUNITY AND
PARENTS AND FAMILY MEMBERS AND
STUDENTS PRESENT A POSTER ON THE
PROJECT THEY WORKED ON OVER THE
SUMMER.
THE PICTURE INCLUDES THE YOUTH
AND THEIR FAMILIES AS WELL AS
OUR RISE UP SCHOLARS.
THIS YEAR THE SCHOLARS ATTENDED
THE INDIGENOUS PEOPLE IN
GENOMICS.
THE SAME CONFERENCE IN NORTHERN
ARIZONA UNIVERSITY AND IN FLAG
STAFF THEY'RE ALSO ATTENDING THE
AMERICAN ENGINEERING AND SCIENCE
CONFERENCE AND IN ADDITION THREE
OF OUR SECOND-YEAR STUDENTS WILL
BE PRESENTING AT THE HEALING OUR
SPIRIT WORLD WIDE CONFERENCE IN
VAN VAN.
NOT MANY YEARS BUT WE'VE DONE
ALL OUR WORK AND WE'RE
PARTICULARLY PROUD OF THE YOUTH
AND OUT OF THE WORK WE DO THE
YOUNG MEDICINE MOVEMENT IS THE
MOST REWARDING.
THE GRATIFICATION OF SEEING THEM
LEARN AND IDEAS AND HOW TO GIVE
BACK IN THE COMMUNITY IS
PARTICULARLY REWARDING.
I REALLY APPRECIATE THE WORK
WE'RE DOING AROUND THIS.
I DO HAVE RECOMMENDATIONS.
IF YOU'RE GETTING THE SLIDES
HOPEFULLY YOU'LL GET THESE AS
WELL.
I WILL LEAVE THESE UP HERE I
SUPPOSE.
THANK YOU VERY MUCH FOR YOUR
TIME.
WE HAVE A SPOT AND HAVE TIME FOR
QUESTIONS FROM OUR TAC MEMBERS.
IF ANYONE HAS QUESTION OR
COMMENTS THEY'D LIKE TO PROVIDE
FOR PANELISTS WE HAD AWESOME
PRESENTATIONS AND WE APPRECIATE
THAT.
>>I WOULD LIKE THE
RECOMMENDATION BACK UP THERE.
ANY OTHER QUESTIONS, COMMENTS?
>>OKAY.
I ALWAYS THINK ABOUT I SHOULD
HAVE SAID THIS AFTER I'M DONE.
SOME OF THE RECENT DATA IN
ALASKA, THERE'S ONLY 143 ALASKAN
NATIVE PEOPLE THAT RECEIVED A
Ph.D. EVER SO IT CAN FEEL AND
SEE RESEARCHERS AND HEALTH CARE
PROVIDERS THE MORE THIS WILL
GROW.
THAT'S SOMETHING I FELT NCRE
PROVIDED
AND TO THINK OF THE FUNDING
YOU'RE NOT JUST FUNDING A
SCHOLAR, YOU'RE FUNDING AN
ENTIRE COMMUNITY.
WE'RE CONNECTED WITH THE
COMMUNITY.
I WORKED WITH 63 COMMUNITIES IN
ALASKA.
DON'T JUST SEE US AS INDIVIDUALS
BUT AS BEING PART OF THE
COLLECTIVE KNOW THERE'S IMPACT
WITH THAT.
>>I AGREE WITH THAT.
ALL THREE OF YOU ARE DEEP
REPRESENTATIONS OF OUR COMMUNES
AND THE WORK YOU DO AND TO BE
ABLE TO COME HERE AND THEY'RE
S
SHARE THAT WORK IS VALUABLE.
THAT'S WHAT WE SHARED AT THE TAC
WHEN WE HAD THESE MEETINGS IS
HOW IMPORTANT THE WORK IS AND
HOW IMPORTANT IT IS TO CONTINUE
TO ADVOCATE FOR THAT AND I
APPRECIATE WHEN YOU TALKED ABOUT
THE ADVOCACY AND SOME CHANGES
BECAUSE PEOPLE DON'T WANT TO
TOUCH IT BECAUSE THERE'S A
NEGATIVE CONNOTATION WITH IT.
ALSO I ALWAYS SAY THE FOGGY
BRAIN AND I BLAME COVID BUT I
MAY BE MY AGE.
I TURNED 50 THIS YEAR.
I THOUGHT I HAVE FOGGY BRAIN AND
I'M LIKE I'M 50.
I'M ALMOST ELDER STATUS.
NOW I LOST MY THOUGHT.
WHEN SHE WAS TALKING ABOUT SEE,
DID I LOSE MY THOUGHT.
WHEN SHE WAS TALKING ABOUT WHAT
WAS IT ON HER PRESENTATION, SHE
WAS TALKING ABOUT THE TRAINING
AND THE RESEARCH AND ABOUT
SELLING IT AND OH, ABOUT SELLING
IT IN AND I'M BUYING WHAT SHE'S
SELLING AND HOW IMPORTANT IT IS
TO COMMUNICATE THAT AND
COMMUNICATE RESEARCH TO THE
COMMUNITY AND WHAT IT IS.
IT REALLY IS INFORMATION AND
DATA ABOUT OUR OURSELVES AND THE
DATA SOVEREIGNTY AND THE
OWNERSHIP AND OUR
INTERPRETATION.
THE DATA IS BEING COLLECTED BY
OTHER PEOPLE AND THE DATA IS
BEING COLLECTED BY THE STATE, BY
THE COUNTY AND THE DEATH
CERTIFICATES ARE BEING TAKEN
THEY'RE BEING COLLECTED BUT
WE'RE NOT LOOKING AT THE DATA.
IT'S IMPORTANT TO BE ASKING THE
QUESTIONS AND UNDERSTANDING OUR
COMMUNITY AND ASKING QUESTIONS
RELEVANT TO WHAT WE WANT TO
KNOW.
TALKING TO OUR COLLEAGUES AND
COMMUNITIES AND PEER TRIBAL
LEADERS SO THEY'RE NOT AFRAID OF
WHAT RESEARCH MEANS.
AND IT MADE SENSE IF WE HAVE
THAT DIALOGUE AND BRING IT BACK
TO OUR WORLD VIEW, THEN WE START
TAKING OWNERSHIP OF IT AND WE
CAN START TO DEVELOP OUR
RESEARCH AND WE CAN START
CREATING MORE OF OUR RESEARCHERS
AND PEOPLE LIKE YOU THAT WILL
FOLLOW IN THOSE FOOTSTEPS.
I APPRECIATE THAT YOU'RE HERE
AND WE HAVE MORE PEOPLE LIKE YOU
THAT ARE ON THE TAC AND THERE
ARE TECHNICAL ADVISORS.
WE JUST NEED MORE -- THANK YOU.
>>SO MUCH RESEARCH RESOLVES
AROUND NON-UNIVERSITIES AND I
KNOW THAT.
IT'S IMPORTANT FOR US DOING WORK
IN OUR COMMUNITIES TO MAKE THE
CONNECTIONS WHERE THE RESEARCH
IS HAPPENING BECAUSE BECAUSE
IT'S SOMETIMES IT'S GENERATING
RESEARCH AND I'VE SEEN DIFFERENT
RESEARCH REPORTS I SAW FLASH
ACROSS THE SCREEN.
I NEVER HEARD OF THEM OR READ OF
THEM.
WE ARE DOING THE WORK AND HOW DO
WE LEARN FROM EACH OTHER?
WE HAVE TO BE PUBLISHING IN
INDIAN COUNTRY.
MAYBE NIH CAN HELP THAT BECAUSE
ON BEHAVIORAL SIDE OF THINGS
THERE'S SO MUCH THERE'S SO MANY
PROBLEMS AND SOMETIMES YOU'LL
FIND PIECE IN THE RESEARCH THAT
MAKE A DIFFERENCE IN WHAT WE'RE
DOING.
>>THANK YOU ALL FOR YOUR
PRESENTATIONS.
IT WAS NICE TO HEAR AND HEAR THE
WORK YOU'RE DOING IS PRETTY
POWERFUL WORK.
I THINK THE COMMENT IN NEEDING
MORE RESEARCHERS AND ROLE MODELS
IS IMPORTANT AND WHEN I STARTED
I HAD NO ROLE MODELS.
IT WAS A DIFFICULT PATH AND I
KNOW THE FIVE WOMEN WHO FOLLOWED
ME ALSO HAD A DIFFICULT PATH BUT
HAVING A ROLE MODEL OR HAVING
SOMEONE YOU CAN TALK SO IS
REALLY IMPORTANT BECAUSE OUR
WORLD VIEW IS DIFFERENT AND HOW
WE SEE THINGS AND EVEN THE
EDUCATION WE'RE GIVEN IS
DIFFERENT AND WE'RE HAVING TO GO
THROUGH AN EDUCATIONAL SYSTEM
THAT IS THAT DOES NOT MATCH ME
WORLD VIEW AND MAKES IT MORE
DIFFICULT.
HAVING THAT SUPPORT IS
IMPORTANT.
AND WORK ON RECIPROCITY AND
BENEFITS THERE'S SO MUCH DEPTH
THERE IF WE WERE TO SEE THEY GOT
THE RESULTS WRONG AND MOST THE
TIME THEY MISINTERPRETED IT AND
OFTEN PEOPLE DO THE RESEARCH AND
LEAVE AND YOU NEVER HEAR
ANYTHING AND IF YOU DID HEAR
SOMETHING, IT WAS HEADLINES IN
THE NEWS THAT WERE NEGATIVE.
AND IF YOU MAKE IT A NEGATIVE
STATEMENT YOU'RE IN THE
IMPROVING HEALTH.
YOU'RE HARM IING HARMING THE HE
PEOPLE.
I THINK PEOPLE IN THE ROOM
UNDERSTAND WHAT I'M TRYING TO
S
SAY.
IT'S IMPORTANT TO HAVE MORE
INDIGENOUS PEOPLE INVOLVED IN
RESEARCH SO THEY UNDERSTAND
THOSE PRINCIPLES AND DON'T FALL
PREY TO WHAT RESEARCHERS HAVE
FALLEN PREY TO.
THANK YOU.
>>I KNOW WE'RE SHORT ON TIME
BUT I'VE BEEN ASKING THIS OF ALL
OF THE DIFFERENT ENTITIES THAT
DO SUPPORT BUILDING OUR OWN
RESEARCHERS AND SUPPORTING THEM
AND GOING HOME BECAUSE RECENTLY
SUPREME COURT JUST STRUCK DOWN
AFFIRMATIVE ACTION SO I'M
WONDERING IF THERE'S THOUGHT ON
THAT FROM NIH HOW TO APPROACH
THAT WITH FUNDING AND
SPECIFICALLY FOR TRIBAL
COMMUNITIES.
I UNDERSTAND THAT OUR TRIBAL
COLLEGES ARE KIND OF SAFE SINCE
WE'RE A POLITICAL ENTITY BUT IF
WE GO TO OTHER UNIVERSITIES WE
CAN'T GET IN BECAUSE AFFIRMATIVE
ACTION AND I UNDERSTAND THERE'S
LOOPHOLES IN THERE BUT I
UNDERSTAND WE NEED MORE THOUGHT
AROUND THAT PIECE WHEN IT COMES
TO THROWING OUR OWN AT THIS
POINT IF THAT HAD BEEN STRUCK
DOWN BY THE SUPREME COURT.
I WANT TO SEE IF WE THOUGHT
ABOUT THAT AT THE NIH LEVEL
ESPECIALLY WHEN SUPPORTING THESE
TYPES OF PROJECTS.
THANK YOU.
I THINK AROUND THE TIME I GOT
HIRED I DO THINK IT'S A GREAT
POINT YOU'RE RAISING WE SHOULD
THINK ABOUT EDUCATION IN PUBLIC
SCHOOL AND UNIVERSITIES.
AT THE UNIVERSITY OF WASHINGTON
PEOPLE USED TO SAY YOU CAN'T DO
CERTAIN THINGS THIS WAS IN THE
EARLY STAGE YEARS AGO BUT THERE
WAS AN EXCEPTION FOR TRIBAL
PEOPLE AND PEOPLE DIDN'T KNOW
ABOUT THAT AND UNDERSTAND THAT.
OFTEN WE BUMP UP AGAINST
IGNORANCE AND PEOPLE NOT
UNDERSTANDING THE SOVEREIGN
NATURE OF OUR NATION AND WERE
OFTEN EXEMPT FROM SOME THINGS.
IT WILL BE INTERESTING TO SEE
THIS BUT I'M HAPPY TO LOOK INTO
THAT AND FOLLOW-UP ON THAT.
>>I THINK WHAT YOU BRING IS
IMPORTANT AND REMIND THEM
THEY'RE TEACHING ON OUR LANDS.
>>THANK YOU FOR YOUR
PRESENTATIONS AND HAPPY BIRTHDAY
TO YOUR DAUGHTER AND FOR THE
REST YOU IF YOU WANT TO STICK
AROUND AND JOIN US, WE'LL BE
HAPPY TO HAVE YOU BUT I KNOW YOU
HAVE BUSY LIVES AND APPRECIATE
YOUR TIME IN SHARING THAT WITH
US.
THANK YOU.
>>IN LIEU WE'RE ASKING ALL OF
FOLKS COME ON UP AND GET READY
AND WHAT I'LL SUGGEST IS IF YOU
NEED TO QUICKLY STRETCH, QUICKLY
STRETCH.
IF YOU NEED TO RUN TO THE
RESTROOM, RUN AND COME RIGHT
BACK SO WE CAN END AS CLOSE TO
THE START TIME.
WE'RE GOING TO TRY TO KEEP ON
GOING.
MAYBE A ONE OR TWO MINUTE BREAK
AND KEEP ON GOING.
WE MAY GO OVER NO MORE THAN A
MINUTE SO I'LL TRY TO KEEP IT TO
THAT.
>>WHILE WE'RE AT BREAK, THE
IMPORTANCE OF LANGUAGE AN
CULTURE MAKE DIFFERENCE IN
RECOVERY AND NONE OF THEM WOULD
ACCEPT AND WERE CONSTANTLY
REJECTED.
I'M SEEING A LITTLE BIT OF
TURNING OF THE TIDE.
NOT AS MUCH AS NEEDS TO BE THERE
AND IT'S GIVE ME HOPE BUT THERE
NEEDS TO BE MORE.
I DON'T KNOW WHERE WE KCAN FOCU
OUR DILIGENCE ON ENSURING THAT
HAPPENS.
>>WE HAVE A LOT OF MECHANISMS
AROUND --
>>OKAY.
WE'RE CLOSING OUT THE DAY.
WE HAVE JOSHUA DENNY AND THANK
YOU FOR YOUR PATIENCE AS WE'RE
RUNNING A LITTLE BIT BEHIND.
HE'S BEEN INVOLVED SINCE THE
"ALL OF US" PROGRAM INCEPTION
AND INVOLVED IN THE PRECISION
MEDICINE WORKING GROUP OF THE
ADVISORY COMMITTEE TO THE
DIRECTOR WHICH DEVELOPED THE
PROGRAM'S INITIAL SCIENTIFIC
BLUEPRINT AND THE PROTOTYPING
PROJECT IN THE "ALL OF US" DATA
AND RESEARCH CENTER.
HE WAS NAMED CEO OF ALL OF US IN
JANUARY 2020.
AND BEFORE JOINING NIH WAS A
PRACTICING POSITION AND HELD
POSITIONS AT VANDERBILT
UNIVERSITY MEDICAL CENTER AND
THANK YOU, DR. DENNY.
>>WELL, IT'S GREAT TO BE IN
PERSON HERE WITH YOU ALL.
I REALLY APPRECIATE THAT.
I HAD THE OPPORTUNITY TO TALK A
FEW TIMES I GUESS VIRTUALLY.
IT'S GREAT TO HAVE THE START OR
CONTINUE TO BUILD A CLOSER
RELATION
RELATIONSHIP.
YOU WERE IN CONSULTATION LAST
WEEK AND IT'S GOOD TO SEE YOU.
YOU'RE ONLINE, THAT'S RIGHT.
OKAY.
GREAT.
WELL, IT WAS GREAT TO WATCH A
FEW OF THESE LAST PRESENTATIONS.
SOME GREAT WORK AND I WAS
INSPIRED.
I'LL SAY A FEW WORDS ABOUT MY
STORY AND WHY I DID THIS.
I GREW UP IN KENTUCKY.
MY GRANDMOTHER HAD A FARM.
MY PARENTS WORKED IN WATER
QUALITY AND BANKING AND MY
FAMILY HISTORY INCLUDES CYSTIC
FIBROSIS AND THE FATHER LOST
FOUR SIBLINGS TO THIS AT A YOUNG
AGE AND A NARRATIVE I GREW UP
WITH AT A HEALTHY MEMBER AT THE
TIME NOT HAVING A WAY IT KNOW IF
HE HAD THE VARIANT THAT KILLED
HIS SIBLING OR NOT.
IT WAS A PERSUASION FOR ME
GETTING INTO MEDICINE AND
GENETIC RESEARCH.
IT TURNS OUT ONE OF MY CHILDREN
ALSO HAS A DIFFERENT RARE
GENETIC DISEASE AS WELL AND WE
WENT THROUGH A SEVEN-YEAR
DIAGNOSTIC ODYSSEY WITH HIM AND
WAS A PRACTICING PHYSICIAN AT
VANDERBILT FOR YEARS AND GOT TO
EXPERIENCE COMMON THESE AND RARE
DISEASE AND RARE SIDE EFFECTS
SOME OF WHICH COULD BE
PREVENTIBLE.
THE UNDERSTANDING THAT DIFFERENT
POPULATIONS NEED DIFFERENT
STRENGTHS OF MEDICINES AND
SOMETIMES WE ACTUALLY KNOW
ENOUGH TO PREDICT THAT AND
PHARMACO GENOMICS IS SOMETHING I
GOT INTO AND "ALL OF US" IS AN
EXTENSION TO UNDERSTAND
PRECISION MEDICINE WRIT LARGE
AND THINKING ABOUT THE DIFFERENT
POPULATIONS AND WE TALKED ABOUT
IT BEFORE.
HERE'S MY GOALS FOR TODAY.
ONE OTHER THING TO MENTION THE
MIDDLE PICTURE IS FROM OUR
COMPREHENSIVE HEALTH UNDERSTAND
IN HAWAI'I.
THEY'RE IN OAHU NOT MAUI BUT
THINK ABOUT THE IMPACT ON THEIR
STATE AS WELL AND A PICTURE THEY
SHARED PREVIOUSLY.
WE HAVE ONE PARTNER AWARD WE
MADE AND TALK A LITTLE BIT ABOUT
THAT.
WE HAD FOUR INFORMATIONAL
LISTENING SESSIONS WE DID IN
JUNE AS A LEAD UP TO OUR
CONSULTATION THAT'S GOING TO
HAPPEN SEPTEMBER 28.
AND SEEK TO ENGAGE TRIBES IN OUR
CONSULTATION AND ENHANCE
COLLABORATION.
WE SEE THIS CONSULTATION WHICH I
THINK WAS OUR THIRD.
WE DID ONE IN COVID AND PRIOR TO
COVID ABOUT RESEARCHER ACCESS.
WE'RE LOOKING FORWARD TO AND
WITH YOU ALL AND WITH THE TRIBAL
CONSULTATION PROCESS.
HERE'S THE AWARD SO FAR.
I'M HOPING TO MAKE AWARE OF
THIS.
IT'S A ROLLING ROA AVAILABLE AND
PEOPLE CAN CONTINUE TO APPLY.
WE HAVE OTHER APPLICATIONS.
I'M LOOKING TO CONTINUE TO EX
CONTINUED THIS.
THE FIRST AWARD GOES TO
UNIVERSITY OF ARIZONA.
THE WORK IS PARTICIPANT FOCUSSED
AROUND COMMUNITY READINESS
ASSESSMENTS WITH POTENTIAL
PARTNERS WE'LL CONVENE AN
ADVISORY BOARD WITH TRIBAL
LEADERS ON TRIBAL LANDS AS WELL
AS REPRESENTING URBAN DWELLING
ON A COMMUNITY TRIBAL MEMBERS.
THE OUTCOME IS FOR TRIBAL
ENGAGEMENT FOR ALL OF US.
YOU CAN SEE THE AWARD AND THE
PERIOD IN THE FIRST YEAR OF THIS
AWARD.
THESE ARE THE AKINDS OF AWARDS
WITH FLEXIBILITY IN THEM.
WE'RE HELPFUL TO CONTINUE TO
ANNOUNCE MORE OF THESE KINDS OF
AWARDS SOON.
I MENTIONED THE LINK THERE AND
THESE ARE SLIDES YOU CAN HAVE
AND AN ONGOING RESEARCH
OPPORTUNITY PEOPLE CAN APPLY TO.
AS A REMINDER WE DID FOUR
LISTENING SESSIONS IN JUNE.
WE JUST COMPLETED OR WERE ABOUT
TO WHEN THE TAC LAST MET AND
THIS WENT WELL AND HAD 60 OR SO
MEMBERS OF DIFFERENT AUDIENCES
AND ATTENDEES.
YOU CAN SEE THE THEMES HERE.
THE SLIDES AND RECORDINGS ARE
AVAILABLE ONLINE AND IT'S PART
OF THE TRIBAL LEADER SENT OUTING
OF THE UPCOMING CONSULTATION.
PEOPLE WANT TO REVIEW SOME OF
THESE MATERIALS AS WE APPROACH
THE CONSULTATION AND INCLUDED
BROAD TOPICS FROM CONDUCTING
OUTREACH IN THE FUTURE TO TRIBAL
LEADERS AND COMMUNITIES, HOW TO
BUILD CAPACITY AND RESEARCH
INFRASTRUCTURE IN TRIBAL
COMMUNITIES AND HEARD GREAT
DISCUSSIONS ON THAT AND
SOMETHING WE ARE EAGER TO BUILD
ON OUR RESEARCH OR WORK BENCH AS
WELL.
THE COMPLEXITY OF
SELF-IDENTIFICATION AND RESEARCH
AND DATA COLLECTION IN TRIBAL
COMMUNITIES AND HOW WE WANT TO
MOVE IN THE FUTURE TO TRIBAL
PARTNERSHIPS.
THAT'S SOMETHING I WANT TO BOTH
SET A PICTURE FOR WHERE WE ARE
NOW AND WHAT WE ARE FACING IN
THE CONSULTATION AND HAVE THIS
BE A STEP OF AN ONGOING PROCESS
AND WHERE WE CAN GO IN THE
FUTURE IN PARTNERSHIP AND WHAT
WE MAY NEED TO THINK ABOUT AND
R
RE-ENVISION THE PROGRAM OR
CERTAIN ASPECTS.
WE HAD TRIBAL CONSULTATION FOR A
BRIEF DISCUSSION AND WE WERE
INVITED TO JOIN THE NIH SESSION
AND IT WAS EXCITING TO HEAR
FEEDBACK.
THE NEXT TRIBAL CONSULTATION
WILL BE SEPTEMBER 28, 1:00 TO
3:00.
TALK ABOUT GRANT POLICIES AND
PROTECT FOR DATA AND INTRODUCE
THE PROGRAM BRIEFLY AND TALK
ABOUT WHERE WERE NOW.
WE ARE NOT DIRECTLY OUTREACHING
TO TRIBAL COMMUNITIES, TRIBAL
LANDS, ETCETERA.
AND THOSE DATA ARE NOT CURRENTLY
IN THE RESEARCHER WORK BENCH.
THAT'S THE KIND OF THING WE'LL
DISCUSS.
WE WANT TO TALK ABOUT OUTREACH
EFFORTS WHERE ZIP CODES OVERLAP
TRIBAL LANDS TO INFORM WHAT WE
COULD DO IN THE FUTURE.
WE'LL TALK ABOUT DATA ACTIVE
EXPANSION AND WILL INCLUDE
RESEARCHERS INTERNATIONALLY AND
INDUSTRY IN THE FUTURE TO BE
ABLE TO ACCESS RESEARCHER WORK
BENCH WITH THE APPROPRIATE
PROTECTIONS THAT WE HAVE IN
PLACE AND/OR WILL BE DEVELOPING
AS THE RESEARCHERS JOIN THE
PROGRAM.
AND WE'RE LAUNCHING PEDIATRICS,
WORKING TO DO THAT SHORTLY.
HOW DO WE NEED TO THINK ABOUT
SPECIAL PROTECTIONS FOR A.I. IN
PARTICIPANTS AND SELF-IDENTIFIED
AND THOSE WHO ARE ACTUAL TRIBAL
MEMBERS AND KNOW SUCH A
PARTNERSHIP WILL BE FORMED.
AND INPUT ON A TRADITIONAL
BLESSING CEREMONY FOR
PARTICIPANT WHO'S DROP FROM THE
PROGRAM.
YOU SEE THE URL THERE AND WE'LL
OF COURSE BE WELCOMING WRITTEN
TESTIMONIES AS WELL.
AS WE APPROACH THIS, ONE OF THE
THINGS WE'D LOVE TO TALK ABOUT
IS HOW TO CONSULT TRIBAL LEADERS
ON THE DEVELOPING PARTS OF THE
PROGRAM.
PEDIATRICS, WHAT UNIQUE
CONSIDERATIONS THERE MIGHT BE
FOR INCLUSION OF A.I. IN
INDIVIDUALS AND THEIR CHILDREN.
CHILDREN 0 TO 12 WILL REQUIRE A
PARENT OR GUARDIAN IN "ALL OF
US" ONE OR BOTH PARENTS AND 13
AND OVER IT WOULD BE OPTIONAL IF
BUT OF COURSE THE PARENTS WOULD
HAVE TO CONSENT TO THE CHILD'S
INVOLVEMENT AND WHAT PRACTICES
AND MEASURES MIGHT WE WANT TO
IMPLEMENT TO AVOID INFRINGING ON
TRIBAL SOVEREIGNTY WHEN
COLLECTING OR WORKING WITH
TRIBAL DATA AND WHAT ADDITIONAL
CONSIDERATIONS MIGHT WE NEED TO
THINK ABOUT AS WE THINK OF
INTERNATIONAL NONPROFIT ACADEMIC
RESEARCHERS USING THIS AS WELL
AS FUTURE INDUSTRY ACCESS TO THE
PROGRAM.
THIS IS A SET OF LINK AVAILABLE
THAT WE INCLUDED ALSO ON FRIDAY
TO ALLOW FOR PEOPLE TO BE AWARE
AND DO THE RESEARCH LET ME PAUSE
AND WOULD LOVE TO OPEN IT FOR
DISCUSSION.
I'D LOVE TO HEAR YOUR INPUT AND
QUESTIONS.
>>OPEN FOR DISCUSSION.
>>I DON'T KNOW WE'LL HAVE TIME
TO GET INTO SOME OF THESE THINGS
RIGHT NOW BUT GETTING BACK TO
SOME OF THE BASICS OF THE "ALL
OF US" RESEARCH, HOW ARE YOU
GOING TO FOLLOW PEOPLE AND
WHAT'S THE LENGTH OF THE
RESEARCH AND OTHER THINGS, I
GUESS?
I DIDN'T GET A PICTURE OF THE
URL THERE TO SEE.
>>IT'S DESIGN FOR DECADES AS
LONG AS THE PARTICIPANT WANTS TO
STAY A PART OF THE PROGRAM.
THE CONSENT IS DESIGN TO BE A
LONG-TERM FOLLOW-UP WITH THE
PROGRAM.
PEOPLE GET ONE SURVEY A YEAR.
THERE'S REGULAR COMMUNICATION
PROBABLY ABOUT QUARTERLY OR SO
IN PARTICIPANT NEWS LETTERS AND
OTHER TIMES THEY GET ALERTS AND
GET TO CHOOSE THINGS LIKE
WHETHER THEY WANT GENETIC
INFORMATION BACK OR LOOK AT
OTHER TYPES OF INFORMATION FOR
THEIR SURVEYS, FOR INSTANCE.
RIGHT NOW IT'S ON MENTAL HEALTH
AND DIFFERENT ASPECTS AND ONE OF
THE THINGS YOU GET ARE
INFORMATION ABOUT SOME
PERSONALITY TRAITS IF YOU WANT
TO LOOK AT IT.
WE TRY TO INCORPORATE THINGS
LIKE THAT AS PART OF THE ONGOING
RELATIONSHIP WITH OUR
PARTICIPANTS.
>>SOME OF THE BARRIERS WITH
TRIBAL ORGANIZATIONS HAVE TO DO
WITH WHO OWNS THE DATA AND WHAT
ABOUT THE SPECIMENS BECAUSE
TRIBES FEEL LIKE THE SPECIMENS
SHOULD BE OWNED BY THE TRIBAL
ORGANIZATIONS OR THE TRIBES.
AND THERE'S POTENTIAL FOR FUTURE
RESEARCH AND WHO GETS A SAY IN
WHAT THE RESEARCH FUTURE IS AND
LAST THING WOULD BE HOW ARE
REPORTS PUT OUT THERE AND HOW
MUCH DO THE TRIBES HAVE A SAY IN
WHAT IS REPORTED.
>>SO, LET ME ADDRESS THE FIRST
QUESTION AND MAY HAVE A
FOLLOW-UP FOR THE SECOND TO MAKE
SURE I'M UNDERSTANDING.
THE FIRST IS ABOUT BIO SPECIMENS
AND DATA.
RIGHT NOW WE HAVE NOT RECRUITED
FROM TRIBAL LANDS AND WE DON'T
KNOW THINGS LIKE TRIBAL
MEMBERSHIP OFFICIAL LY PEOPLE WO
SELF-IDENTIFIED AS AIN THOSE ARE
DATA NOT DISCLOSED TO OUR
RESEARCHERS.
THAT'S WHAT WE'RE TALKING ABOUT
THE NEXT STEP.
REGULATORY, FDA AND OTHER
THINGS.
MOVING THE SAMPLES WE ALREADY
STORED FROM THESE
SELF-IDENTIFIED PARTICIPANTS
WOULD PROBABLY BE A CHALLENGING
THING TO DO AND I THINK IT WOULD
BE DIFFICULT BUT AS WE THINK
ABOUT APPROACHING MAYBE
PARTNERSHIP WITH TRIBAL NATIONS
AND ON TRIBAL LANDS OR WITH
OFFICIAL TRIBAL MEMBERSHIP,
THOSE KINDS OF THINGS, I WOULD
BE OPEN TO OTHER DISCUSSIONS ON
WHAT THOSE LOOK LIKE.
SO THAT WOULD BE A PHASE I WOULD
LOVE TO GET INTO WITH FUTURE
CONSULTATIONS.
>>IF PARTICIPANTS ARE ABLE TO
SELF-IDENTIFY AND I SAW THAT
THERE ARE IN THE TRIBAL
CONSULTATION TOPICS THERE WAS
CHALLENGES OF
SELF-IDENTIFICATION.
WHAT HAVE YOU THOUGHT ABOUT IN
MAKING SURE THE DATA YOU ARE
GETTING FROM SELF-IDENTIFICATION
AND FROM THE STUDY IS GOING TO
BE REALLY GOOD QUALITY DATA.
IF IT'S PRECISION MEDICINE, HOW
DO WE KNOW THEY'RE TRULY
INDIGENOUS WHEN IT'S FOR THERE
TO BE SHIFTING AND FOR PEOPLE TO
IDENTIFY AS INDIGENOUS NATIVE
AMERICAN WITHOUT BASIS?
>>I DON'T THE ANSWER TO THAT.
YOU COULD PROBABLY HELP ADVISE
WITH THE PROCESS.
I'D BE OPEN TO IT.
ONE THING WE NEED TO MAKE CLEAR
IS WHAT THE DATA WITH HAVE NOW
ON AND PEOPLE HAVE SELECTED AIN
AND OTHERS OPTIONS TOO AND
WHATEVER THEIR GRANDPARENT TOLD
THEM AND THOSE SELF-IDENTIFYING
MAY BE A PERCENTAGE OR NOT.
AS WE DEVELOP GENETIC DATA AND
LOOKING AT PHARMACO GENETIC
INTERACTIONS OR LOOKING AT
DISEASE GENE INTERACTIONS, THOSE
MEASUREMENTS WHICH MAY BE
DIFFERENT IN DIFFERENT
POPULATIONS WOULD BE VALID IF
YOU TAKE IT OUT OF THE ANCESTRY
CONTEXT.
THOSE INCLUSIONS WILL CREATE A
MORE RELEVANT DATA SET IF WE'RE
LOOKING BUT HOW DO WE KNOW
SOMEONE IS INDIGENOUS TRIBAL
MEMBER OR OF THAT GENETIC
HERITAGE, I THINK THAT MAY BE
PART OF SOMETHING THAT'S A
FUTURE PARTNERSHIP.
THERE MAY ALSO BE QUESTIONS WE
WANT TO ADD.
WE HAVE A CURRENT TIER OF
INFORMATION RELEASED THAT
OPERATES AS A DE-IDENTIFIED TIER
OF INFORMATION AND MAYBE THAT'S
A TIER OF INFORMATION WE'D GO
THROUGH A PROCESS THAT THESE ARE
MORE PROBABILISTICALLY
REPRESENTING AN INDIGENOUS
INFORMATION AND CAN RELEASE THAT
WITH PERMISSION OF TRIBES IF IT
INCLUDED SUGGESTED OR SEL
SELF-IDENTIFICATION OF TRIBE.
IF SOMEONE DID THAT THAT MAY
INCREASE THE PROBABILITY.
WE DON'T WANT TO SHARE ANYTHING
LIKE THAT UNLESS WE HAVE THE
PERMISSION BUT THAT MAY INCREASE
THE PROBABILITY OF SOMEONE WHO
IS A REAL TRIBAL MEMBER.
>>I THINK IT WOULD BE
CHALLENGING TO KEEP
SELF-IDENTIFICATION AND
PARTICIPANTS WHO SELF-IDENTIFY
ONLY IN A SAMPLE AND BE
CONFIDENT IN THAT IN PRECISION
MEDICINE CONCLUSIONS ABOUT
INDIGENOUS POPULATIONS BASED ON
THAT, HOWEVER, IF THERE WAS A
WAY TO DIFFERENT IS THAT RIGHT
THE DATA BETWEEN WHERE YOU HAVE
BUILT RELATIONSHIPS WITH
COMMUNITY AND PARTNERSHIP AND
WHERE YOU'RE WORKING IN
PARTNERSHIP WITH COMMUNITY TO
SAMPLE WITHIN A COMMUNITY, THAT
WOULD BE IDENTIFYING IN THE DATA
SET VERSUS SELF-REPORT ALONE AND
MY MAIN CONCERN IS MAKING
CONCLUSIONS ABOUT THE POPULATION
THAT PRESENT BASED ON THE
IDENTITY IS A CHALLENGE.
>>IT'S A DISCUSSION WE CAN HAVE
ON HOW TO APPROACH THAT AND WHAT
AGREEMENTS MIGHT MAKE SENSE IN
DOING SO.
>>WHEN YOU'RE TALKING ABOUT
IDENTIFICATION, SO WE WERE
TALKING ABOUT A PISCATAWAY TRIBE
NOT RECOGNIZED AND A CHINOOK
TRIBE AND THEY'RE NOT
RECOGNIZED.
THERE'S A LOT OF TRIBAL PEOPLE
IN THIS COUNTRY THE FEDERAL
GOVERNMENT GOVERNMENT REFUSES TO
ACKNOWLEDGE.
SO IT'S A LITTLE BIT BEYOND
REALISTICALLY THE RECOGNIZED
PRODUCTS.
SO SO I UNDERSTAND THAT.
IF I SAY THE PISCATAWAY TONAWAY
TRIBE IS IF THEY'RE NOT IN THE
DROP DOWN MENU SO IF THEY'RE NOT
ONE OF THOSE YOU'RE NOT KEEPING
THEIR NAME.
>>RIGHT NOW IT'S A TEXT FIELD
AND IT'S NOT EXPOSED EXCEPT FOR
AN INPUT FIELD.
FROM MY PERSPECTIVE I DON'T KNOW
THE REGULATIONS MY BIAS WOULD TO
BE EXPAND BEYOND WHAT FEDERALLY
RECOGNIZED TRIBES WOULD BE.
THERE'S NO REASON NOT TO INCLUDE
THAT KIND OF INFORMATION.
WE TRY TO BE COMPREHENSIVE IN
HOW PEOPLE IDENTIFY AND WOULD
LOVE TO DO THE SAME WITH THE
BLESSING OF TRIBES IN THIS SPACE
AS WELL.
>>THIS IS SUPER INTERESTING.
I USE INDIAN HEALTH SERVICE AT
HOME AND GIVING HEALTH CARE
PROVIDERS INFORMATION THEY NEED
TO CUSTOMIZE WE DON'T HAVE
SPECIALIZED SERVICES.
HAVE YOU CONSULTED WITH IHS AND
IT COULD GIVE INFORMATION TO IHS
TO SEE THE CAPACITY.
>>WE HAD EARLY CONVERSATIONS
AND THEY GET BRIEFED INTO THE
THINGS THEY WOULD DO TO INCLUDE
IHS.
AND MICHAEL, I DON'T KNOW IF YOU
WANT TO COMMENT ANYMORE ABOUT
OUR INTERACTION WITH IHS AS YOU
MAYBE YOU MIGHT WANT TO USE THE
MIC SO PEOPLE CAN HEAR YOU AS
YOU COME UP.
I'LL SAY BRIEFLY WE WOULD LOVE
TO PARTNER FROM AN EXPERIENCE
PERSPECTIVE.
WE ARE RETURNING ACTIONABLE
GENETIC RESULTS, PHARMACO
GENETICS IF PEOPLE WANT THEM AND
THEY CAN BE HARD TO GET
CLINICALLY AND VERY EXPENSIVE
AND VERY ACTIONABLE.
I CARRY A COUPLE PHARMACO
GENETICS THAT WOULD ALTER MY
RESPONSE TO PLAVIX AND OTHER AND
BECAUSE WE'RE DOING A DEEPER
SEQUENCING OF THESE VARIANTS AND
CAN PROVIDE RESULTS.
>>ONE OF THE REASONS WE'RE
EXCITED TO WORK WITH SOME OF
THOSE OUTREACH BECAUSE IT'S NOT
ONLY FOR A PROGRAM LIKE OURS BUT
ACROSS THE AGENCY WHERE WE CAN
BUILD THE STRONGER CONNECTIONS.
>>IT'S IMPORTANT TO KEEP
INSURANCE COMPANIES FROM GETS
ACCESS TO INDIVIDUAL DATA.
>>IT'S DIRECT TO THE
PARTICIPANT NOT TO INSURANCE
COMPANIES.
>>SO IF IT MAKES IT IN OUR
MEDICAL RECORD I'M NOT SURE
WHERE THAT POTENTIALLY CAN GO.
>>THE POTENTIAL RISK IS
LONG-TERM CARE AND LIFE
INSURANCE.
IT DOESN'T SO MUCH AFFECT
PHARMACO GENETIC RESULTS, OF
COURSE, BUT COULD AFFECT SOME
HEREDITARY DISEASES AND THINGS
LIKE THAT.
WE DO PART OF OUR EDUCATION
MODULES ON THAT BEFORE YOU GET
THE RESULTS ARE THOSE RISKS AND
GET YOU A SENSE WHERE YOU CAN
SEE THE RESULTS YOU MIGHT GET
AND UNDERSTAND WHAT THAT COULD
MEAN AND WHETHER IT WOULD AFFECT
THINGS.
I'LL SAY AS AN ASIDE, I HAVE A
FRIEND WHO HAD SOME OF THE
RESULTS, TOLD HER INSURANCE
COMPANY AND THEY SAID, YEAH,
WE'RE STILL GIVING YOU THE GREAT
RATING.
THEY MAY GET THERE IN THE
FUTURE.
>>I WANTED TO MAKE A COMMENT
ABOUT GO BACK TO I DON'T WANT TO
SAY EDUCATION BUT INFORMING AND
EDUCATING WHAT THIS IS AND THE
APPLICABILITY OF WHAT THIS CAN
DO.
WHAT PRECISION MEDICINE CAN DO
AND GIVING EXAMPLES HOW THIS CAN
BE APPLIED.
AND MY MOM HAD A KIDNEY
TRANSPLANT MANY YEARS AGO AND
THANK GOD SHE'S NEVER HAD
COMPLICATIONS.
WHEN SHE WENT TO THE E.R. THEY
SAID YOU'RE AREN'T HAVING WITH
THEIR KIDNEY CANCER.
THAT'S REMARKABLE YOU NEVER HEAR
THAT AND WE WOULD TAKE HER TO
URGENT CARE AND REALIZES WE
SHOULDN'T ANYMORE AND SOMETIMES
THEY GIVE HER MEDICINES THAT
INTERACT WITH THE MEDICINES THEY
GIVE HER AT THE HOSPITAL AND YOU
HAVE TO STAY CONSISTENT WITH THE
MEDICATIONS.
WE SHOULDN'T DO THAT ANYMORE SO
ONE OF THE THINGS WE REALIZED
WAS STICK TO THE ONE HOSPITAL
AND THEY ALREADY KNOW AND
EVERYBODY KNOWS WHEN YOU GO TO
THE HOSPITAL THEY KEEP ASKING
YOU FOREVER AND AGAIN AND AGAIN
WHAT'S YOUR MEDICATION, WHAT
MEDICATIONS ARE YOU ON, WHAT
MEDICATIONS BECAUSE SHE HAD A
KIDNEY TRANSPLANT AND NOT TO
GIVE HER HIPAA INFORMATION HERE
BUT YOU GET THE BIG OLD LIST.
IT'S LIKE MY GOSH, YOU HAVE TO
DO ALL THIS STUFF BUT WHEN YOU
GO TO THE HOSPITAL YOU HAVE TO
GIVE THEM THE SAME INFORMATION,
SAME INFORMATION.
WITH PRECISION MEDICINE IT'S
IMPORTANT TO SHARE WITH US
CLEARLY THE APPLICABILITY OF
WHAT THIS CAN DO.
WHEN YOU'RE IN A HOSPITAL AND IF
WE HAVE THIS DATA AND CAN SHOW
IN THESE KIEPZ --
TYPES OF CASES WE CAN CREATE
THESE TYPES OF MEDICINES AND
DON'T WANT TO CREATE SWEEPING
LIKE THIS IS GOING TO WORK ON
NATIVE AMERICANS BUT WE CAN SHOW
PRECISION MEDICINE CAN WORK IN
MOST CASES.
DOCTORS ARE NOT GOING TO
PROSCRIBE THIS OR MOST LIKE HI
THIS IS GOING TO WORK.
OR YOU'RE NOT GOING TO BE TESTED
FOR A BUNCH OF STUFF THEY DO
WHEN YOU GO TO THE E.R. OR
HAPPENING RIGHT NOW.
THE WHOLE POINT IS PRECISION
MEDICINE BASED ON GENETICS.
SIMPLIFYING THE COMPLEX.
>>AND I MENTIONED OUR PLAVIX
GIVEN AFTER HEART ATTACK AND
STATE OF HAWAI'I SUE THE MAKER
BECAUSE IT WASN'T ADEQUATELY
TESTED IN HAWAIIAN POPULATIONS.
60% OF THE NATIVE HAWAIIAN
POPULATION HAS LOSS OF FUNCTION
MUTATIONS IN THE KEY ENZYME FOR
THAT DRUG.
SO THE DRUG DOESN'T DO ANYTHING
AND HAVE A 60% INCREASE RISK OF
HEART ATTACK AND TWOFOLD
INCREASE OF STROKE AND HAS
IMPACT.
THERE'S SO MUCH WE DON'T KNOW
AND WE COULD EASILY DISCOVER
THROUGH PROGRAMS LIKE OUR AND
PARTNERSHIPS.
IT'S GREAT ADVICE.
WE WILL TRY TO TAKE THAT INTO
CONSULTATION.
>>IT SEEMS LIKE YOU HAVE ZIP
CODES YOU HAVE TO LIVE WITH TO
BE PART OF ALL OF US IF YOU
DON'T LIVE OUTSIDE THE ZIP CODES
YOU'RE NOT OR WHAT?
>>RIGHT NOW ANYONE, EVERYWHERE
CAN GO BUT WE BLOCK TRIBAL ZIP
CODES.
WE CAN'T GET MARKETING IN THERE
OR ANYTHING LIKE THAT BECAUSE OF
OUR TRIBAL CONSULTATION WORKING
GROUP AND WITH YOU ALL IS WHERE
WE ARE NOW.
I WOULD LOVE TO MOVE IN THE
SPACE HOW TO MOVE FORWARD TO
ADVANCE THIS.
I WOULD LOVE TO HAVE THE
DISCUSSION.
>>I KNOW FOR EXAMPLE, ONE TRIBE
I KNOW OF AND I WON'T MENTION
ANYTHING BEYOND THAT SAYS THEY
HAVE A HIGHER INCIDENCE OF
CANCER.
THEY'RE BLAMING ON POLLUTION OF
THE FISH, NOW, I DON'T KNOW IF
GENETIC TESTING WOULD BE HELPFUL
AND UNDERSTANDING IF IT'S A
GENETIC ISSUE OR ENVIRONMENTAL
HEALTH ISSUE.
I KNOW THEY ASKED THE CDC AND
GOT NOWHERE IN LOOKING AT THAT
SITUATION.
SO SOME TRIBES HAVE INTERESTING
AND GENERAL THINGS GOING ON IN
THE COMMUNITY THIS POTENTIALLY
CAN HELP THEM UNDERSTAND MAYBE.
>>AND WE'RE INTERESTING IN THE
GENETICS AND ENVIRONMENT AND
INTERACTION.
WE WOULD LOVE TO GET BOTH OF
THAT AND ONE OF THE AWARDS WE'RE
GOING TO AWARD VERY SOON IS
BASED ON COLLECTION AND LINKAGE
DATA.
WE DON'T HAVE A LOT OF
ENVIRONMENTAL DATA YET BUT ON
THE PATH TO TRY TO GET MORE AND
WE'D HAVE THE BIO SAMPLES TO
LINK TO DATA SETS AND THOSE ARE
HYPOTHESES WE'RE DESIGNED WE'RE
DESIGN TO HELP SUPPORT.
>>AND SOME OF US IN WASHINGTON
STATE HAVE THE SAME ISSUE AND WE
WERE BORN DOWN WHEN THEY HAD
RELEASES OF RADIO ACTIVE
ISOTOPES IN THE ATMOSPHERE.
THAT'S A LOT OF US IN WASHINGTON
FEED INTO THAT CATEGORY ALSO.
I KNOW BECAUSE OF THE MINING ON
OTHER RESERVATIONS THAT'S AN
ISSUE ALSO.
>>THANK YOU.
I KNOW THE CONSULTATION IS STILL
YOU'RE STILL IN THE PROCESS OF
DOING CONSULTATION BUT WONDERING
IF TRIBES CAN OPT IN.
I KNOW YOU BLOCKED OUR ZIP CODES
BUT IF WE WANTED TO OPT-IN IS
THAT A POSSIBILITY OR DO YOU
WANT TO WAIT UNTIL AFTER
CONSULTATION?
>>I THINK WAIT UNTIL AFTER
CONSULTATION BUT WOULD LOVE TO
START A DISCUSSION LIKE THAT.
>>THANKS.
AND BUILDING OFF ALICIA'S POINTS
IN CONSULT WITH IHS AND I WANTED
TO EMPHASIZE AND YOU'RE DOING
THE TRIBAL CONSULTATION WHICH IS
GREAT BUT MAKING SURE THAT EVEN
IF IT'S THROUGH AN IHS FACILITY
EACH TRIBE APPROVES
PARTICIPATION AND GIVES THAT
ACTIVE CONSENT RATHER THAN ONLY
GOING THROUGH IHS BECAUSE THAT
CAN CREATE COMPLICATIONS AND
ALSO IS GOING BACK TO THE TRIBAL
SOVEREIGNTY.
>>THAT'S ALWAYS THE ASSUMPTION
WE'VE HAD IT WOULD BE A TRIBE BY
TRIBE THING.
>>THAT'S GREAT.
>>WELL, IT'S SOUNDS LIKE WE'VE
HAD A LIVELY DISCUSSION AND IT'S
GREAT.
GOOD CONSIDERING IT'S THE END OF
THE DAY.
WHAT I'D LIKE TO DO IS I'M NOT
GOING TO PROVIDE A SUMMARY FOR
THE END OF THE DAY TODAY BUT GO
AHEAD AND SAY THANK YOU TO
EVERYBODY FOR EVERYONE'S ACTIVE
PARTICIPATION IN SHARING AND I'M
GOING TO TURN IT OVER TO DONNA
TO CLOSE US OFF IN A GOOD WAY.
>>CREATOR, THANK YOU FOR
BRINGING US TOGETHER AND FOR THE
STRENGTH AND WISDOM OF ALL THOSE
WHO ARE PRESENT.
THANK YOU FOR THE PRESENTERS AND
THE PRESENTATIONS THAT SHOWED US
THE GOOD RESEARCH BEING DONE AND
ALSO WHAT NEEDS TO BE DONE IN
THE FUTURE.
THANK YOU FOR HELPING US AND
TEACH OTHERS WHAT WE NEED TO
TEACH THEM ON HOW TO DO RESEARCH
IN A GOOD WAY THAT BENEFITS
AMERICAN INDIAN AND ALASKAN
NATIVE POPULATIONS TO BENEFIT
THE CHILDREN OF THE FUTURE.
THANK YOU FOR BRINGING US
TOGETHER AND LETTING US HAVE
THESE CONVERSATIONS AND ALL THE
PEOPLE WHO ARE PRESENT HERE
LISTENING AND THOSE IN THE
BACKGROUND LEARNING.
THANK YOU FOR KEEPING OUR
FAMILIES SAFE AS WE'RE AWAY FROM
THEM AND THANK YOU FOR A RESTFUL
EVENING BEFORE WE RETURN TO THIS
WORK TOMORROW.
THANK YOU.
WE'RE OFFICIALLY ADJOURNED FOR
THE DAY.