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GOOD MORNING, 

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I'M DR. STEPHEN 

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SHERRY, ACTING DIRECTOR OF THE 

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NATIONAL INSTITUTE OF HEALTH.

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I'M HONORED TO WELCOME YOU TO 

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THE SIXTH ANNUALLINDBERG-KING 

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LECTURE CO-SPONSORED BY THE 

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NLM, FRIENDS OF THE NATIONAL 

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LIBRARY OF MEDICINE AND AMIA.

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THIS ANNUAL LECTURE WAS 

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ESTABLISHED IN 2015 AS A FORUM 

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TO BRING TOGETHER INSIGHTS ON 

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THE CURRENT STATE AND THE 

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FUTURE OF BIO INFORMATICS AND 

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PATHO INFORMATION.

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THIS HONORS THE LEGACY AND 

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CONTRIBUTIONS OF THE LATE AND 

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FORMER DIRECTOR DR. DONALD A.B. 

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LINDBERG AND FORMER DEPUTY 

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DIRECTOR FOR RESEARCH IN 

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EDUCATION, DR. DONALD WEST KING.

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BEFORE I INTRODUCED TO'S 

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DISTINGUISHED GUEST SPEAKER I 

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WOULD LIKE TO THANK AMIA FOR 

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THEIR REMARKS.

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WE WILL HEAR FIRST FROM GLENN 

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P. CAMPBELL CHAIR OF FLM.

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AND GRETCHEN JACKSON.

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GLENN, OVER TO YOU.

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>> THANK YOU, ON BEHALF OF
DR. 

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REDMOND, DR. BALLAST PRESIDENT 

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AND VICE PRESIDENT OF THE 

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FRIENDS OF NATIONAL LIBRARY OF 

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MEDICINE RESPECTIVELY AND ALL 

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ON THE NATIONAL LIBRARY OF 

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MEDICINE IT'S MY PRIVILEGE AND 

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HONOR TO WELCOME YOU AS WELL TO 

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THE 2023 LINDBERG KING LECTURE, 

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"GOT COMMUNITY? REFLECTIONS ON 

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THE RELEVANCE OF COMMUNITY 

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ENGAGEMENT IN EQUITABLE HEALTH 

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INFORMATICS AND DATA SCIENCE 

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INNOVATIONS".

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THE FRIENDS ARE PLEASED ONCE 

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AGAIN TO CO-SPONSOR THE ANNUAL 

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LINDBERG KING LECTURE AT 

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AMERICAN MEDICAL INFORMATICS 

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ASSOCIATION.

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DR. LINDBERG IS A FORMER 

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DIRECTOR OF THE NATIONAL 

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LIBRARY OF MEDICINE AND 

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INNOVATIVE GROUND BREAKER IN 

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INFORMATICS.

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AND DR. KING, A BIO PATHOLOGIST 

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AND EXPERT IN EDUCATION.

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THEY ESTABLISHED THE 

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LINDBERG-KING LECTURE IN 2015.

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THEY WOULD BE THRILLED IN 2023 

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TO WELCOME AND LISTEN TO DR. 

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SUZANNE BAKKEN WHOSE KNOWLEDGE 

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OF BIOMEDICAL INFORMATICS IS 

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WILDLY HERALDED AND MENTORSHIP 

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ARE GLOBALLY RECOGNIZED.

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AMONG MANY LAURELS AND HONORS 

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OF THE FRIENDS OF THE NATIONAL 

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LIBRARY OF MEDICINE INFORMATICS 

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AWARD WHICH SHE RECEIVED IN 

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2016.

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HER RESEARCH AND CLINICAL 

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EXPERTISES ARE NOTED FOR 

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PATIENT, FOCUSED AND COMMUNITY 

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ENGAGEMENT.

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DR. BAKKEN'S COMPASSIONATE 

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NATURE AND CAPACITY FOR EMPATHY 

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INFORM HER PROFESSIONAL LIFE 

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AND WRITINGS AND NO DOUBT WILL 

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INFORM HER WORDS TODAY.

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WE REMAIN GRATEFUL TO AND 

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APPRECIATIVE TO OUR COLLEAGUES 

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AT THE NATIONAL LIBRARY OF 

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MEDICINE.

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THE NLM MEDIA OPERATIONS, DEREK 

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MacLEAN, DR. SHERRY, BAPSKI AND 

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DR. RESNICK.

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IT'S MY PLEASURE TO TURN NEXT 

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TO OUR VERY DISTINGUISHED 

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COLLEAGUE, DR. GRETCHEN 

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JACKSON, VICE PRESIDENT AND 

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SCIENTIFIC MEDICAL OFFICER AT 

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AMIA.

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OVER TO YOU.

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>> Gretchen Jackson: THANK
YOU, 

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DR. CAMPBELL.

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I'M THE CHAIR OF THE BOARD OF 

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DIRECTORS OF THE AMERICAN 

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MEDICAL INFORMATICS ASSOCIATION.

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AND HONORED TO HAVE A FEW 

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MOMENTS TO MAKE A FEW REMARKS 

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ON BEHALF OF AMIA, THE 

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PROFESSIONAL ORGANIZATION IN 

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THE UNITED STATES.

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I BELIEVE AN IMPORTANT PART OF 

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THE LEGACY OF THE NATIONAL 

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LIBRARY OF MEDICINE.

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AMIA REPRESENTS OVER 5400 

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BIOMEDICAL AND HEALTH 

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INFORMATICS PROFESSIONALS WHO 

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WORK ACROSS ACADEMICS INDUSTRY, 

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HEALTH SYSTEMS,  NONE PROFIT 

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AND GOVERNMENT.

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IT EMERGED FROM CONVERGENCE OF 

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PROFESSIONAL SOCIETIES AND 

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CONFERENCES.

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AND DR. LINDBERG HONORED TODAY 

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PLAYED A KEY ROLE IN EACH COME 

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POEN NT.

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DR. LINDBERG PRESENTED AT FIRST 

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SYMPOSIUM OF MEDICAL CARE, 

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SAMSI.

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ENGINEERS, SCIENTISTS AND 

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CLINICIANS MET TO DISCUSS 

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SCIENTIFIC AND CLINICALLY 

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SIGNIFICANT PAPERS AT THE 

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INTERSECTION OF COMPUTERS AND 

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MEDICINE.

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THIS MEETING GREW RAPIDLY AND 

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BECAME THE PLACE TO BE TO KEEP 

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ABREAST OF  THE EMERGING FIELD 

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OF MEDICAL INFORMATICS.

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THEN DR. KING FORMED ACME WITH 

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ITS FIRST FELLOWS IN 1985 AND 

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IT'S ONE OF THE HIGHEST HONORS 

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FOR SUBSTANTIVE AND SUSTAINED 

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CONTRIBUTIONS TO THE FIELD OF 

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INFORMATICS.

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IN THE 1980'S, AMERICAN 

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ASSOCIATION FOR MEDICAL SYSTEMS 

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AND INFORMATICS, WAS THE 

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LEADING ORGANIZATION FOR 

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COMPUTER SYSTEMS IN MEDICINE.

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BY THE LATE 1980s, IF YOU ARE 

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NOT CONFUSED WITH ACRONYMS 

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ALREADY, THE OVER LAPSE OF 

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INTEREST OF LEADERSHIP ACROSS 

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LAMSCI, SAMSCI AND ACME WERE 

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SUBSTANTIAL.

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FORMING A SINGLE ORGANIZATION 

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WAS IN THE BEST INTEREST OF ALL.

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DR. LINDBERG SELECTED AS 

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FOUNDING PRESIDENT OF THE NEW 

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ORGANIZATION, WHICH IS AMIA.

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WHICH WAS LEGALLY INCORPORATED 

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IN 1990.

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THE ANNUAL MEETING OF AMIA WAS 

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CALLED SCAMSI FOR THE FIRST 

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FIVE YEARS OF MERGER AND 1987 

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BECAME THE AMIA ANNUAL 

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SYMPOSIUM WHICH IS OUR FLAGSHIP 

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INFORMATIC SCIENTIFIC MEETING 

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TODAY.

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THE FIELD OF BIOMEDICAL 

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INFORMATICS HAS GROWN RAPIDLY 

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THE LAST SEVERAL DECADES FROM 

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ROOTS FOCUSED IN CLINICAL AND 

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MEDICAL APPLICATIONS TO 

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ENCOMPASS BIO INFORMATICS 

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PUBLIC HEALTH AND CONSUMER 

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HEALTH INFORMATICS.

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IN 2022, DR. DONALD WEST KING 

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JOINED THE NATIONAL LIBRARY OF 

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MEDICINE AFTER A DISTINGUISHED 

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CAREER AS PATHOLOGY DEPARTMENT 

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CHAIR, DEAN AND EXECUTIVE VICE 

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PRESIDENT AT UNIVERSITY OF 

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CHICAGO MEDICAL CENTER.

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DR. KING SERVED AS DEPUTY 

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DIRECTOR FOR RESEARCH AND 

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EDUCATION FOR THE NATIONAL 

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LIBRARY OF MEDICINE UNTIL 2008.

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HE WAS AN AMBASSADOR TO A 

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DIVERSE RANGE OF SCIENTIFIC 

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PUBLIC HEALTH AND LIBRARY 

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SCIENCE ORGANIZATIONS 

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SUPPORTING THE EVOLUTION OF THE 

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NATIONAL LIBRARY OF MEDICINE'S 

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PROGRAMS TO KEEP PACE WITH THE 

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DIVERSIFICATION OF THE FIELD OF 

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INFORMATICS.

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DR. KING WAS EQUALLY KNOWN FOR 

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HIS GENEROSITY, HIS CHARM AND 

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HIS WISE SCIENTIFIC ADVICE.

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SO THIS YEAR AMIA IS ABSOLUTELY 

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DELIGHTED TO RECOMMEND DR. SUE 

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BAKKEN TO DELIVER THE 

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LINDBERG-KING LECTURE AND I 

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COULDN'T THINK OF A MORE 

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APPROPRIATE PERSON TO HONOR DR. 

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LINDBERG AND DR. KING'S LEGACIS.

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DR. BAKKEN IS THIS YEAR'S 

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RECIPIENT OF PRESTIGIOUS AWARD 

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FOR EXCELLENCE, THE HIGHEST 

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FORETHOUGHT LEADERSHIP IN THE 

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FIELD OF INFORMATICS.

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SHE HAS MADE BROAD AND DEEP 

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CONTRIBUTIONS TO THE FIELD OF 

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INFORMATICS INCLUDING 

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LEVERAGING TECHNOLOGIES TO 

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ADDRESS AND CARE FOR THE MOST 

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VULNERABLE POPULATIONS, AS WELL 

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AS ADDRESSING INEQUITIES IN 

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HEALTH AND HEALTHCARE DELIVERY 

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LONG BEFORE IT WAS COOL TO DO 

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SO.

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LIKE DR. LINDBERG SHE HAS BEEN 

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A LEADER IN INFORMATICS 

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RESEARCH, EDUCATION AND 

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PUBLICATION AND LIKE DR. KING 

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SHE IS WARM AND GENEROUS AND 

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SHE BUILDS RELATIONSHIPS ACROSS 

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PROFESSIONAL ORGANIZATIONS AND 

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OF COURSE IS WELL KNOWN FOR HER 

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WISE SCIENTIFIC COUNSEL.

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AS A GRATEFUL RECIPIENT MYSELF 

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OF NATIONAL LIBRARY OF MEDICINE 

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PREDOCTORAL INTERNSHIP, I AM 

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HONORED FOR THE OPPORTUNITY TO 

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OFFER REMARKS AT THIS NLM EVENT 

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AND I WILL TURN THE MEETING 

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BACK TO DIRECTOR DR. STEVE 

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SHERRY.

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>> STEPHEN SHERRY: THANK
YOU 

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FOR YOUR PARTICIPATION AND 

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PARTNERSHIP ON THIS ANNUAL 

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LECTURE.

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AS WE BEGIN YOU WILL RECEIVE A 

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LIFE FEEDBACK BUTTON UNDER THE 

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VIDEO SCREEN.

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PLEASE USE THIS TO SEND 

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QUESTIONS.

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THIS WILL BE MODERATED BY MY 

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COLLEAGUE DR. JEFF RESNICK.

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IT'S NOW MY PRIVILEGE AND 

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PLEASURE TO UNTRO DEUCE OUR 

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DISTINGUISHED GUEST DR. BAKKEN.

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FOLLOWING NURSING AT UNIVERSITY 

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OF SAN FRANCISCO, SHE COMPLETED 

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POSTDOCTORAL FELLOWSHIP MEDICAL 

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INFORMATICS AT STANFORD 

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UNIVERSITY.

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THE GOAL OF PROGRAM OF RESEARCH 

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IS TO PROMOTE HEALTH AND REDUCE 

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HEALTH DISPARITIES IN 

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UNDERSERVED POPULATIONS THROUGH 

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INNOVATIVE INFORMATICS METHODS.

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FOCUS OF THE CURRENT GRANT 

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PORTFOLIO IS VISUALIZATION OF 

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HEALTHCARE DATA FOR COMMUNITY 

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MEMBERS, PATIENTS, CLINICIANS 

259
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AND COMMUNITY-BASED 

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ORGANIZATIONS INCLUDING THE 

261
00:09:34,572 --> 00:09:36,907
CREATION OF A VISUALIZATION 

262
00:09:36,907 --> 00:09:39,243
TOOLBOX TO ADDRESS COVID-19 

263
00:09:39,243 --> 00:09:43,047
TESTING AND VACCINE UP TAKE.

264
00:09:43,047 --> 00:09:46,083
DR. BAKKEN DIRECTS THE 

265
00:09:46,083 --> 00:09:47,484
PRECISION AND SELF-MANAGEMENT 

266
00:09:47,484 --> 00:09:50,955
CENTER AND REDUCING HEALTH 

267
00:09:50,955 --> 00:09:52,122
DISPARITIES THROUGH INFORMATICS 

268
00:09:52,122 --> 00:09:55,159
PRE AND POSTDOCTORAL TRAINING 

269
00:09:55,159 --> 00:09:58,429
PROGRAM BOTH FUNDED BY NINR.

270
00:09:58,429 --> 00:10:00,097
DR. BAKKEN HAS SERVED AS 

271
00:10:00,097 --> 00:10:02,633
PRINCIPLE INVESTIGATOR OF THE 

272
00:10:02,633 --> 00:10:05,402
AHRQ FUNDED WASHINGTON HEIGHTS 

273
00:10:05,402 --> 00:10:07,805
INFORMATICS INFRASTRUCTURE FOR 

274
00:10:07,805 --> 00:10:09,406
COMPARATIVE RESEARCH, WISER AND 

275
00:10:09,406 --> 00:10:10,407
IT'S FOLLOW-UP STUDY WISER FOR 

276
00:10:10,407 --> 00:10:11,542
YOU.

277
00:10:11,542 --> 00:10:13,210
WHICH IS FOCUSED ON PROMOTING 

278
00:10:13,210 --> 00:10:16,747
THE USE OF WISER INFRASTRUCTURE 

279
00:10:16,747 --> 00:10:18,115
THROUGH STAKEHOLDER ENGAGEMENT.

280
00:10:18,115 --> 00:10:19,783
DR. BAKKEN HAS RECEIVED FUNDING 

281
00:10:19,783 --> 00:10:21,819
FOR THE NATIONAL CANCER 

282
00:10:21,819 --> 00:10:23,921
INSTITUTE, NATIONAL LIBRARY OF 

283
00:10:23,921 --> 00:10:25,422
MEDICINE AND HEALTH RESOURCES 

284
00:10:25,422 --> 00:10:26,256
ADMINISTRATION.

285
00:10:26,256 --> 00:10:29,660
SHE HAS PUBLISHED MORE THAN 300 

286
00:10:29,660 --> 00:10:31,528
PEER REVIEWED PAPERS.

287
00:10:31,528 --> 00:10:35,432
IN 2010 SHE WILL RECEIVE PATH 

288
00:10:35,432 --> 00:10:36,333
FINDER REWARD FROM FRIENDS OF 

289
00:10:36,333 --> 00:10:37,534
RESEARCH.

290
00:10:37,534 --> 00:10:41,271
2019 SHE HAD THE FRANCOIS GEMY 

291
00:10:41,271 --> 00:10:42,206
FROM INFORMATIC ASSOCIATION.

292
00:10:42,206 --> 00:10:43,874
SHE IS AN ELECTED FELLOW OF THE 

293
00:10:43,874 --> 00:10:46,677
NEW YORK ACADEMY OF MEDICINE.

294
00:10:46,677 --> 00:10:48,078
AMERICAN ACADEMY OF NURSING, 

295
00:10:48,078 --> 00:10:49,947
AMERICAN COLLEGE OF MEDICAL 

296
00:10:49,947 --> 00:10:52,049
INFORMATICS AND MEMBER OF THE 

297
00:10:52,049 --> 00:10:53,083
INSTITUTE OF MEDICINE NOW AT 

298
00:10:53,083 --> 00:10:54,184
THE NATIONAL ACADEMY OF 

299
00:10:54,184 --> 00:10:55,853
MEDICINE.

300
00:10:55,853 --> 00:10:56,787
DR. BAKKEN, WELCOME, AND THANK 

301
00:10:56,787 --> 00:11:00,290
YOU FOR JOINING US TODAY.

302
00:11:00,290 --> 00:11:03,794
>> Suzanne Bakken: THANK
YOU SO 

303
00:11:03,794 --> 00:11:06,830
MUCH, DR. SHERRY FOR THAT 

304
00:11:06,830 --> 00:11:09,500
INTRODUCTION AND TO MR. 

305
00:11:09,500 --> 00:11:12,302
CAMPBELL AND DR. JACKSON FOR 

306
00:11:12,302 --> 00:11:13,337
THEIR OPENING REMARKS.

307
00:11:13,337 --> 00:11:16,240
IT'S SUCH A PRIVILEGE AND SO 

308
00:11:16,240 --> 00:11:23,313
HUMBLING TO BE INVITED TO GIVE 

309
00:11:23,313 --> 00:11:28,552
THIS LECTURE.

310
00:11:28,552 --> 00:11:30,354
AND LIKE MOST FOLKS I REALLY 

311
00:11:30,354 --> 00:11:35,259
WANT TO START OFF WITH SOME 

312
00:11:35,259 --> 00:11:36,427
PERSONAL REMARKS BECAUSE I 

313
00:11:36,427 --> 00:11:41,231
WOULD SAY THE DONALDS AND THEIR 

314
00:11:41,231 --> 00:11:44,668
MARY'S AND I ALL SHARE COLUMBIA 

315
00:11:44,668 --> 00:11:45,703
IN COMMON.

316
00:11:45,703 --> 00:11:47,538
I DIDN'T KNOW THAT WE WOULD 

317
00:11:47,538 --> 00:11:52,176
WHEN I FIRST MET DON LINDBERG 

318
00:11:52,176 --> 00:11:53,644
IN 1986.

319
00:11:53,644 --> 00:11:56,413
AND A WONDERFUL RECEPTION FOR 

320
00:11:56,413 --> 00:11:58,282
NET INFO '86 AT THE NATIONAL 

321
00:11:58,282 --> 00:12:00,417
AIR AND SPACE MUSEUM.

322
00:12:00,417 --> 00:12:02,720
I WAS INTRODUCED TO DON 

323
00:12:02,720 --> 00:12:05,723
LINDBERG BY DAVID SCHEYERS THEN 

324
00:12:05,723 --> 00:12:07,091
THE AMIA PRESIDENT.

325
00:12:07,091 --> 00:12:08,625
AND HE SAID, DON, I WANT YOU TO 

326
00:12:08,625 --> 00:12:09,493
MEET SUE.

327
00:12:09,493 --> 00:12:12,329
SHE IS A NURSE STUDYING 

328
00:12:12,329 --> 00:12:12,996
INFORMATICS.

329
00:12:12,996 --> 00:12:14,231
I THINK YOU SHOULD GIVE HER 

330
00:12:14,231 --> 00:12:15,799
SOME MONEY.

331
00:12:15,799 --> 00:12:18,402
ONE DAY HE DID, INDEED.

332
00:12:18,402 --> 00:12:20,671
AND WE DIDN'T KNOW THEN THAT IT 

333
00:12:20,671 --> 00:12:23,273
WOULD BE AN NLM FUNDED TRAINING 

334
00:12:23,273 --> 00:12:25,843
SPOT OR EVENTUALLY I WOULD GET 

335
00:12:25,843 --> 00:12:27,478
SOME ADDITIONAL MONEY.

336
00:12:27,478 --> 00:12:32,316
BUT I WANTED TO JUST SAY ABOUT 

337
00:12:32,316 --> 00:12:35,619
THE COLUMBIA CONNECTION IS BOTH 

338
00:12:35,619 --> 00:12:38,222
DON LINDBERG AND DONALD WEST 

339
00:12:38,222 --> 00:12:41,525
KING WERE MEDICAL RESIDENTS AT 

340
00:12:41,525 --> 00:12:41,792
COLUMBIA.

341
00:12:41,792 --> 00:12:44,094
THAT IN THE COLLEGE OF 

342
00:12:44,094 --> 00:12:47,231
PHYSICIANS AND SURGEONS.

343
00:12:47,231 --> 00:12:48,832
DON LINDBERG ACTUALLY MET HIS 

344
00:12:48,832 --> 00:12:50,934
MARY WHEN SHE WAS WORKING AS A 

345
00:12:50,934 --> 00:12:53,670
NURSE IN THE VANDERBILT CLINIC 

346
00:12:53,670 --> 00:12:55,939
AT COLUMBIA.

347
00:12:55,939 --> 00:13:00,110
AND OF COURSE MARY ELISABETH 

348
00:13:00,110 --> 00:13:02,646
KING WAS ALSO A GRADUATE OF 

349
00:13:02,646 --> 00:13:06,750
PHYSICIANS AND SURGEONS FOR HER 

350
00:13:06,750 --> 00:13:08,118
MEDICAL DEGREE.

351
00:13:08,118 --> 00:13:10,687
IN ADDITION TO THE POSITIONS 

352
00:13:10,687 --> 00:13:13,590
THAT DR. JACKSON MENTIONED FOR 

353
00:13:13,590 --> 00:13:17,294
DR. KING, HE WAS ALSO THE CHAIR 

354
00:13:17,294 --> 00:13:20,197
OF PATHOLOGY AT COLUMBIA.

355
00:13:20,197 --> 00:13:22,966
AND CURRENTLY THERE'S STILL, 

356
00:13:22,966 --> 00:13:25,803
THEY ENDOWED, THERE'S AN 

357
00:13:25,803 --> 00:13:27,738
ENDOWED CHAIR NAMED AFTER 

358
00:13:27,738 --> 00:13:30,007
DONALD WEST KING AND MARY 

359
00:13:30,007 --> 00:13:32,309
ELISABETH KING CURRENTLY IN OUR 

360
00:13:32,309 --> 00:13:33,911
DEPARTMENT OF PATHOLOGY.

361
00:13:33,911 --> 00:13:36,480
I WANTED TO JUST SHARE THIS 

362
00:13:36,480 --> 00:13:41,018
LAST EMAIL I GOT FROM DON 

363
00:13:41,018 --> 00:13:50,761
LINDBERG.

364
00:13:50,761 --> 00:13:53,096
DR. SHERRY MENTIONED I RECEIVED 

365
00:13:53,096 --> 00:13:54,097
THE FRANCOIS?

366
00:13:54,097 --> 00:13:55,799
(?) AWARD.

367
00:13:55,799 --> 00:13:57,534
THIS IS THE LAST EMAIL I GOT 

368
00:13:57,534 --> 00:13:58,135
FROM DON.

369
00:13:58,135 --> 00:14:03,507
BY THE TIME I PHYSICALLY 

370
00:14:03,507 --> 00:14:05,342
RECEIVED THE AWARD DON HAD DIED.

371
00:14:05,342 --> 00:14:06,710
SO THIS EMAIL IS REALLY 

372
00:14:06,710 --> 00:14:08,645
PRECIOUS.

373
00:14:08,645 --> 00:14:09,346
CONGRATULATIONS SUZANNE, I 

374
00:14:09,346 --> 00:14:12,616
WOULD GIVE A LOT TO SEE YOU 

375
00:14:12,616 --> 00:14:15,452
DANCING WITH FRANCOIS GREMY.

376
00:14:15,452 --> 00:14:17,087
I NEVER HAD AN OPPORTUNITY TO 

377
00:14:17,087 --> 00:14:19,957
MEET HIM BECAUSE WHEN HE WAS IN 

378
00:14:19,957 --> 00:14:23,460
THE HEIGHT OF HIS CAREER, I WAS 

379
00:14:23,460 --> 00:14:25,929
STILL BECOMING NURKS   --  

380
00:14:25,929 --> 00:14:27,731
NURSE, BUT MAYBE I HAVE A DANCE 

381
00:14:27,731 --> 00:14:31,068
IN MY FUTURE IN ANOTHER SPACE.

382
00:14:31,068 --> 00:14:33,103
IT WAS WONDERFUL GETTING TO 

383
00:14:33,103 --> 00:14:34,738
KNOW THE LINDBERGS, 

384
00:14:34,738 --> 00:14:36,473
PARTICULARLY THROUGH THE 

385
00:14:36,473 --> 00:14:38,008
WOODSELL COURSE.

386
00:14:38,008 --> 00:14:40,110
AND ANYONE FOLLOWING UP ON 

387
00:14:40,110 --> 00:14:42,913
REMARKS THAT DR. JACKSON MADE 

388
00:14:42,913 --> 00:14:46,283
ABOUT DONALD WEST KING, WHEN 

389
00:14:46,283 --> 00:14:48,185
THERE ARE TIMES I WAS ON THE 

390
00:14:48,185 --> 00:14:51,021
BOARD OF SCIENTIFIC COUNSELLORS 

391
00:14:51,021 --> 00:14:53,557
FOR MR. HILL, I WOULD END UP 

392
00:14:53,557 --> 00:14:55,859
BEING ABLE TO SIT NEXT TO DR. 

393
00:14:55,859 --> 00:14:57,261
KING AT DINNER.

394
00:14:57,261 --> 00:14:58,929
IT MADE YOU FEEL YOU HAD WON 

395
00:14:58,929 --> 00:15:00,063
THE LOTTERY.

396
00:15:00,063 --> 00:15:03,333
IT WOULD ALWAYS BE SUCH AN 

397
00:15:03,333 --> 00:15:05,369
INCREDIBLE CONVERSATIONS.

398
00:15:05,369 --> 00:15:07,371
NOW MOVING ONTO MY FORMAL 

399
00:15:07,371 --> 00:15:07,905
REMARKS.

400
00:15:07,905 --> 00:15:11,375
I WANT TO START WITH JUST A FEW 

401
00:15:11,375 --> 00:15:13,176
DEFINITIONS FIRST.

402
00:15:13,176 --> 00:15:15,112
THESE DEFINITIONS COME FROM A 

403
00:15:15,112 --> 00:15:17,915
REPORT FROM THE NATIONAL 

404
00:15:17,915 --> 00:15:19,349
ACADEMIES, CALLED COMMUNITIES 

405
00:15:19,349 --> 00:15:20,884
IN ACTION, PATHWAYS TO HEALTH 

406
00:15:20,884 --> 00:15:21,885
EQUITY.

407
00:15:21,885 --> 00:15:24,254
I WAS VERY PRIVILEGED TO BE 

408
00:15:24,254 --> 00:15:26,890
ABLE TO STAFF THIS PARTICULAR 

409
00:15:26,890 --> 00:15:29,593
REPORT WHEN I WAS IN THE NURSE 

410
00:15:29,593 --> 00:15:31,762
SCHOLAR AND RESIDENCE AT THE 

411
00:15:31,762 --> 00:15:32,696
INSTITUTE OF MEDICINE.

412
00:15:32,696 --> 00:15:34,464
I GUESS IT WAS ABOUT A DECADE 

413
00:15:34,464 --> 00:15:35,766
AGO.

414
00:15:35,766 --> 00:15:37,401
BUT WE CAN THINK OF COMMUNITIES 

415
00:15:37,401 --> 00:15:39,603
IN A NUMBER OF DIFFERENT WAYS.

416
00:15:39,603 --> 00:15:41,238
BUT THINKING ABOUT IT FROM THE 

417
00:15:41,238 --> 00:15:43,140
PERSPECTIVE OF IT BEING A 

418
00:15:43,140 --> 00:15:45,275
SOCIAL UNIT WITH COMMONALITIES, 

419
00:15:45,275 --> 00:15:48,712
SUCH AS PLACE, NORMS, RELIGION, 

420
00:15:48,712 --> 00:15:50,881
VALUES, CUSTOMS OR IDENTITY, OF 

421
00:15:50,881 --> 00:15:52,282
COURSE, ALSO THINKING ABOUT THE 

422
00:15:52,282 --> 00:15:54,384
NOTION OF NEIGHBORHOODS.

423
00:15:54,384 --> 00:15:56,453
BUT COMMUNITIES CAN ALSO BE 

424
00:15:56,453 --> 00:15:57,721
ELECTRONIC.

425
00:15:57,721 --> 00:16:01,091
AND WE THINK ABOUT THAT FROM 

426
00:16:01,091 --> 00:16:03,994
THE PERSPECTIVE OF INFORMATICS 

427
00:16:03,994 --> 00:16:05,595
AND DATA SCIENCE WHEN 

428
00:16:05,595 --> 00:16:08,432
COMMUNITIES MAY SHARE A SENSE 

429
00:16:08,432 --> 00:16:14,237
OF PLACE SITUATED IN A SPACE, 

430
00:16:14,237 --> 00:16:17,007
COULD BE VIRTUAL SPACE THAT IS 

431
00:16:17,007 --> 00:16:18,208
TECHNOLOGY FACILITATED.

432
00:16:18,208 --> 00:16:20,210
THE THING THAT WE KNOW ABOUT 

433
00:16:20,210 --> 00:16:23,013
COMMUNITY ENGAGEMENT AND THE 

434
00:16:23,013 --> 00:16:26,016
EVIDENCE AS WELL, SYNTHESIZED 

435
00:16:26,016 --> 00:16:27,884
IN THIS REPORT THAT YOU SEE ON 

436
00:16:27,884 --> 00:16:30,220
THE SCREEN, IS COMMUNITY 

437
00:16:30,220 --> 00:16:32,155
ENGAGEMENT IS REALLY ESSENTIAL 

438
00:16:32,155 --> 00:16:35,392
TO ADVANCED HEALTH EQUITY.

439
00:16:35,392 --> 00:16:38,395
AND ALSO THERE IS SUBSTANTIAL 

440
00:16:38,395 --> 00:16:40,831
EVIDENCE THAT FAILURE TO 

441
00:16:40,831 --> 00:16:43,467
APPROPRIATELY ENGAGE WITH 

442
00:16:43,467 --> 00:16:44,334
COMMUNITY, NEGATIVELY 

443
00:16:44,334 --> 00:16:45,502
INFLUENCES CLINICAL RESEARCH 

444
00:16:45,502 --> 00:16:49,606
PROCESS AND ITS OUTCOMES.

445
00:16:49,606 --> 00:16:53,076
SO WE HAVE MUCH DOCUMENTATION 

446
00:16:53,076 --> 00:16:57,047
ABOUT RANDOMIZED CONTROL TRIAL 

447
00:16:57,047 --> 00:16:58,782
THAT DIDN'T HIT THEIR 

448
00:16:58,782 --> 00:17:00,117
RECRUITMENT OUTCOMES.

449
00:17:00,117 --> 00:17:01,051
INTERVENTIONS THAT WERE 

450
00:17:01,051 --> 00:17:02,919
DEVELOPED AND WEREN'T ABLE TO 

451
00:17:02,919 --> 00:17:04,087
BE IMPLEMENTED BECAUSE THEY 

452
00:17:04,087 --> 00:17:05,255
DIDN'T TAKE INTO ACCOUNT THE 

453
00:17:05,255 --> 00:17:07,824
CONTEXT OF THE COMMUNITIES.

454
00:17:07,824 --> 00:17:08,925
IN RECENT YEARS, THERE'S NO 

455
00:17:08,925 --> 00:17:10,660
DOUBT THAT THE NATIONAL 

456
00:17:10,660 --> 00:17:12,362
INSTITUTES OF HEALTH AND OTHER 

457
00:17:12,362 --> 00:17:16,066
FUNDING AGENCIES HAVE REALLY 

458
00:17:16,066 --> 00:17:17,634
INITIATED MANY ACTIVITIES 

459
00:17:17,634 --> 00:17:21,772
DESIGNED TO FACILITATE THE 

460
00:17:21,772 --> 00:17:23,373
ENGAGEMENT PROCESS.

461
00:17:23,373 --> 00:17:25,709
FROM A PERSONAL PERSPECTIVE AT 

462
00:17:25,709 --> 00:17:31,214
THE MOMENT, A RECENT NIH 

463
00:17:31,214 --> 00:17:34,017
INITIATIVE RELATES TO ITS NOVEL 

464
00:17:34,017 --> 00:17:35,452
AND EXCEPTIONAL TECHNOLOGIES 

465
00:17:35,452 --> 00:17:37,988
AND RESEARCH ADVISORY COMMITTEE.

466
00:17:37,988 --> 00:17:40,824
IT'S CALLED NEXT TRACK.

467
00:17:40,824 --> 00:17:42,092
A COMMITTEE I'VE BEEN APPOINTED 

468
00:17:42,092 --> 00:17:48,765
TO.

469
00:17:48,765 --> 00:17:52,269
THE INTERIM DIRECTOR AT NIH 

470
00:17:52,269 --> 00:17:57,974
CHARGED THE NEXT TRACK GROUP TO 

471
00:17:57,974 --> 00:18:01,344
START A GROUP CALLED ENGAGED.

472
00:18:01,344 --> 00:18:03,013
ENGAGING THE PUBLIC AS PARTNERS 

473
00:18:03,013 --> 00:18:04,714
IN CLINICAL RESEARCH.

474
00:18:04,714 --> 00:18:06,516
I'M THE CO-LEAGUE OF THE ENGAGE 

475
00:18:06,516 --> 00:18:07,250
WORKING GROUP.

476
00:18:07,250 --> 00:18:08,885
WE ARE CHARGED WITH DEVELOPING 

477
00:18:08,885 --> 00:18:10,854
A VISION AND FRAMEWORK FOR 

478
00:18:10,854 --> 00:18:12,489
INCLUDING PUBLIC VOICES IN THE 

479
00:18:12,489 --> 00:18:17,561
DESIGN AND PLANNING OF 

480
00:18:17,561 --> 00:18:18,929
NIH-FUNDED RESEARCH AND MORE 

481
00:18:18,929 --> 00:18:20,597
BROADLY AROUND THE 

482
00:18:20,597 --> 00:18:22,232
DISSEMINATION OF THOSE RESEARCH 

483
00:18:22,232 --> 00:18:26,069
FINDINGS.

484
00:18:26,069 --> 00:18:27,904
I'VE TALKED ABOUT COMMUNITY 

485
00:18:27,904 --> 00:18:30,941
ENGAGEMENT IN MANY VENUES AND 

486
00:18:30,941 --> 00:18:33,777
THROUGH MANY DIFFERENT LENSES.

487
00:18:33,777 --> 00:18:36,079
WHAT I REALLY WANTED TO DO 

488
00:18:36,079 --> 00:18:37,714
TODAY WAS REALLY TO REFLECT ON 

489
00:18:37,714 --> 00:18:39,616
THE RELEVANCE OF COMMUNITY 

490
00:18:39,616 --> 00:18:41,251
ENGAGEMENT AND HEALTH 

491
00:18:41,251 --> 00:18:43,120
INFORMATICS AND DATA SCIENCE 

492
00:18:43,120 --> 00:18:50,127
INTERVENTIONS THROUGH THE LENS 

493
00:18:50,127 --> 00:18:52,229
OF EPISTEMIC JUSTICE, I FIRST 

494
00:18:52,229 --> 00:18:54,998
HEARD THROUGH A STUDENT-LED 

495
00:18:54,998 --> 00:18:57,067
INITIATIVE WITHIN AMIA THAT WAS 

496
00:18:57,067 --> 00:19:00,003
FOCUSED ON JUSTICE INFORMATICS.

497
00:19:00,003 --> 00:19:02,472
AND THEN SECONDLY, I RECENTLY 

498
00:19:02,472 --> 00:19:04,841
HEARD A VERY ENGAGING TALK ON 

499
00:19:04,841 --> 00:19:07,377
THIS TOPIC AT MED INFO IN 

500
00:19:07,377 --> 00:19:09,479
AUSTRALIA AND IT REALLY MADE ME 

501
00:19:09,479 --> 00:19:11,781
WANT TO LOOK AT A NUMBER OF 

502
00:19:11,781 --> 00:19:13,183
THINGS I'M INVOLVED WITH 

503
00:19:13,183 --> 00:19:21,158
THROUGH THAT PARTICULAR LENS.

504
00:19:21,158 --> 00:19:24,027
BEFORE I GET TO EPISTEMIC 

505
00:19:24,027 --> 00:19:26,496
JUSTICE, WHICH I WILL DEFINE, I 

506
00:19:26,496 --> 00:19:33,236
WANT TO TALK ABOUT, I HAVE 

507
00:19:33,236 --> 00:19:34,738
HEALTH INFORMATICS AND DATA 

508
00:19:34,738 --> 00:19:37,374
SCIENCE IN MY TALKS.

509
00:19:37,374 --> 00:19:41,444
WE SEE DIFFERENT VERSIONS WHAT 

510
00:19:41,444 --> 00:19:43,647
IS INFORMATICS, MACHINE 

511
00:19:43,647 --> 00:19:44,915
LEARNING, ET CETERA.

512
00:19:44,915 --> 00:19:46,550
DEPENDING ON THE LENS OF THE 

513
00:19:46,550 --> 00:19:48,385
FIELD YOU COME FROM, YOU MIGHT 

514
00:19:48,385 --> 00:19:51,688
DO A VERY DIFFERENT DIAGRAM OF 

515
00:19:51,688 --> 00:19:53,323
HOW THESE DIFFERENT THINGS END 

516
00:19:53,323 --> 00:19:55,425
UP RELATING TO EACH OTHER.

517
00:19:55,425 --> 00:19:57,394
BUT ONE OF THE THINGS I FIND 

518
00:19:57,394 --> 00:19:59,162
MOST USEFUL IS SIMPLY THINKING 

519
00:19:59,162 --> 00:20:01,064
ABOUT WHETHER ONE IS FOCUSING 

520
00:20:01,064 --> 00:20:03,833
ON NUMBERS AS DATA, TEXT AS 

521
00:20:03,833 --> 00:20:06,236
DATA, IMAGES AS DATA IS ONE WAY 

522
00:20:06,236 --> 00:20:07,671
OF LOOKING AT IT.

523
00:20:07,671 --> 00:20:09,472
FOR THE LAST FEW YEARS, OFTEN I 

524
00:20:09,472 --> 00:20:11,808
WOULD SAY, ONE OF THE THINGS 

525
00:20:11,808 --> 00:20:14,311
THAT'S DIFFERENT ABOUT 

526
00:20:14,311 --> 00:20:15,946
INFORMATIC RATHER THAN 

527
00:20:15,946 --> 00:20:17,113
ARTIFICIAL INTELLIGENCE IS WE 

528
00:20:17,113 --> 00:20:19,216
SPEND A LOT MORE TIME WORRIED 

529
00:20:19,216 --> 00:20:20,383
ABOUT THE HUMAN IN THE LOOP.

530
00:20:20,383 --> 00:20:21,851
BUT CERTAINLY IN THE LAST TWO 

531
00:20:21,851 --> 00:20:25,522
YEARS WE HAVE HEARD A LOT MORE 

532
00:20:25,522 --> 00:20:35,966
ABOUT HUMAN-CENTERED A.I.

533
00:20:42,839 --> 00:20:45,942
EPISTEMIC JUSTICE COMES FROM 

534
00:20:45,942 --> 00:20:47,077
MIRANDA FRICKER WHO WROTE THIS 

535
00:20:47,077 --> 00:20:48,979
BOOK IN THE 70s.

536
00:20:48,979 --> 00:20:51,548
IT'S DEFINED AS A WRONG DONE TO 

537
00:20:51,548 --> 00:20:52,749
SOMEONE SPECIFICALLY IN THEIR 

538
00:20:52,749 --> 00:20:54,150
CAPACITY AS A KNOWER.

539
00:20:54,150 --> 00:20:56,953
YOU CAN THINK ABOUT IT FROM A 

540
00:20:56,953 --> 00:21:00,423
COUPLE OF RELATED SUB CONCEPTS 

541
00:21:00,423 --> 00:21:03,860
OF EPISTEMIC INJUSTICE.

542
00:21:03,860 --> 00:21:05,061
TESTIMONIAL INJUSTICE OCCURS 

543
00:21:05,061 --> 00:21:06,429
WHEN A PREJUDICE CAUSES A 

544
00:21:06,429 --> 00:21:09,466
HEARER TO GIVE A DEFLATED SENSE 

545
00:21:09,466 --> 00:21:10,667
OF CREDIBILITY TO A SPEAKER'S 

546
00:21:10,667 --> 00:21:11,334
WORD.

547
00:21:11,334 --> 00:21:12,769
THIS MAY BE INDIVIDUAL OR IT 

548
00:21:12,769 --> 00:21:17,674
MAY BE AT THE STRUCTURAL LEVEL.

549
00:21:17,674 --> 00:21:24,514
THE OTHER RELATED CONCEPT IS 

550
00:21:24,514 --> 00:21:25,448
HERMENEUTICAL INJUSTICE, THIS 

551
00:21:25,448 --> 00:21:28,985
HAPPENS WHEN A GAP IN 

552
00:21:28,985 --> 00:21:29,919
COLLECTIVE INTERPRETIVE 

553
00:21:29,919 --> 00:21:32,022
RESOURCES PUTS SOMEONE AT AN 

554
00:21:32,022 --> 00:21:32,956
UNFAIR DISADVANTAGE WHEN IT 

555
00:21:32,956 --> 00:21:34,691
COMES TO MAKING SENSE OF THEIR 

556
00:21:34,691 --> 00:21:35,558
SOCIAL EXPERIENCES.

557
00:21:35,558 --> 00:21:38,128
THIS MAY BE DUE TO LACK OF 

558
00:21:38,128 --> 00:21:40,764
CONCEPTS TO EXPRESS ONE'S 

559
00:21:40,764 --> 00:21:41,865
EXPERIENCE OR MISALIGNMENT 

560
00:21:41,865 --> 00:21:43,566
BETWEEN ONE'S EXPERIENCE AND 

561
00:21:43,566 --> 00:21:44,934
SOCIALLY ACCEPTED CONCEPTS.

562
00:21:44,934 --> 00:21:46,136
WHEN THINKING ABOUT IT I THINK 

563
00:21:46,136 --> 00:21:51,675
OF ONE OF MY FORMER POSTDOCS 

564
00:21:51,675 --> 00:21:52,575
WORK.

565
00:21:52,575 --> 00:21:55,111
MAYA TULOR IS FUNDED BY 

566
00:21:55,111 --> 00:21:56,513
NATIONAL INSTITUTE OF RESEARCH 

567
00:21:56,513 --> 00:22:01,518
FOR HER WORK ON PAIN 

568
00:22:01,518 --> 00:22:04,888
COMMUNICATION FOR THE MONG?

569
00:22:04,888 --> 00:22:06,956
(?) POPULATION.

570
00:22:06,956 --> 00:22:13,063
THE YOUNGER REAL WHERE I HAVE 

571
00:22:13,063 --> 00:22:15,031
ORAL RATHER THAN WRITTEN 

572
00:22:15,031 --> 00:22:15,965
COMMUNICATION.

573
00:22:15,965 --> 00:22:18,101
THEY WERE HAVING ISSUES 

574
00:22:18,101 --> 00:22:19,936
COMMUNICATING WITH CLINICIANS 

575
00:22:19,936 --> 00:22:22,038
AND GETTING ADEQUATE PAIN 

576
00:22:22,038 --> 00:22:22,972
MANAGEMENT.

577
00:22:22,972 --> 00:22:24,641
SO FOR EXAMPLE, ONE OF THE 

578
00:22:24,641 --> 00:22:33,616
CONCEPTS THAT BECAME VERY CLEAR 

579
00:22:33,616 --> 00:22:38,054
IN THE WORK THAT DR. MOORE DID, 

580
00:22:38,054 --> 00:22:41,057
WAS THE NOTION OF PAIN FEELING 

581
00:22:41,057 --> 00:22:43,126
LIKE A ROOSTER PECKING AT YOUR 

582
00:22:43,126 --> 00:22:45,095
SKIN.

583
00:22:45,095 --> 00:22:48,298
AND SO, VERY MUCH, THIS IS AN 

584
00:22:48,298 --> 00:22:52,135
INSTANCE OF HERMENEUTICAL 

585
00:22:52,135 --> 00:22:54,237
INJUSTICE CAN OCCUR AND THE 

586
00:22:54,237 --> 00:22:56,706
CLINICIAN DIDN'T NECESSARILY 

587
00:22:56,706 --> 00:22:59,275
HAVE, AND THE PATIENT 

588
00:22:59,275 --> 00:23:00,910
EXPERIENCING THE PAIN DIDN'T 

589
00:23:00,910 --> 00:23:02,545
HAVE THE INTERPRETIVE RESOURCES.

590
00:23:02,545 --> 00:23:04,914
SO SHE IS FOCUSED ON CREATING 

591
00:23:04,914 --> 00:23:06,316
THOSE TYPE OF COMMUNICATION 

592
00:23:06,316 --> 00:23:14,724
TOOLS THAT CAN HELP WITH THAT.

593
00:23:14,724 --> 00:23:18,328
THE NOTIONS OF EPISTEMIC 

594
00:23:18,328 --> 00:23:20,397
INJUSTICE CAME INTO THE 

595
00:23:20,397 --> 00:23:22,132
LITERATURE A BIT LATER IN THE 

596
00:23:22,132 --> 00:23:23,767
MID 80s.

597
00:23:23,767 --> 00:23:25,235
IT'S BEEN ADDRESSED IN SOME 

598
00:23:25,235 --> 00:23:27,637
DIFFERENT WAYS.

599
00:23:27,637 --> 00:23:29,472
SOME IS JUST NOTIONS OF THE 

600
00:23:29,472 --> 00:23:31,508
PEOPLE WHO ARE ILL IN GENERAL.

601
00:23:31,508 --> 00:23:33,009
ALSO FROM THE PERSPECTIVE OF 

602
00:23:33,009 --> 00:23:36,079
PEOPLE WITH MENTAL ILLNESS.

603
00:23:36,079 --> 00:23:36,780
PEOPLE EXPERIENCING PAIN.

604
00:23:36,780 --> 00:23:41,017
AND MUCH OF THIS HAS TO DO WITH 

605
00:23:41,017 --> 00:23:43,787
HAVING CLINICIANS DISCREDIT 

606
00:23:43,787 --> 00:23:46,423
THEIR LIVED EXPERIENCE, BEING 

607
00:23:46,423 --> 00:23:48,258
ILL, EXPERIENCING A MENTAL 

608
00:23:48,258 --> 00:23:49,159
ILLNESS OR THEIR PAIN 

609
00:23:49,159 --> 00:23:50,393
EXPERIENCE.

610
00:23:50,393 --> 00:23:52,929
ALSO THIS HAS COME UP MORE 

611
00:23:52,929 --> 00:23:57,434
RECENTLY IN A LANCET GLOBAL 

612
00:23:57,434 --> 00:24:06,776
HEALTH PER  ASPERA  PERSPECTIVE 

613
00:24:06,776 --> 00:24:10,513
THINKING HOW WE COLLABORATE, 

614
00:24:10,513 --> 00:24:12,382
VERSUS THE DOMINANT PERSPECTIVE 

615
00:24:12,382 --> 00:24:15,785
THAT MAY COME FROM SCIENTISTS 

616
00:24:15,785 --> 00:24:18,988
WHO ARE PARTICULARLY TRAINED TO 

617
00:24:18,988 --> 00:24:24,160
FOCUS ON GENERALIZABLE FINDINGS 

618
00:24:24,160 --> 00:24:26,796
AND HOW THAT PLAYS OUT IN 

619
00:24:26,796 --> 00:24:28,364
GENERATING KNOWLEDGE.

620
00:24:28,364 --> 00:24:29,866
ALSO TIES TO CONCEPTS THAT HAVE 

621
00:24:29,866 --> 00:24:32,569
COME UP IN THE LITERATURE, 

622
00:24:32,569 --> 00:24:38,107
RELATED TO THINGS SUCH AS 

623
00:24:38,107 --> 00:24:40,043
COLONIALIST APPROACHES TO 

624
00:24:40,043 --> 00:24:43,012
SCIENCES, ET CETERA.

625
00:24:43,012 --> 00:24:44,714
MORE RECENTLY, AND THE 

626
00:24:44,714 --> 00:24:47,317
LITERATURE HAS INCREASED EVEN 

627
00:24:47,317 --> 00:24:49,686
SINCE I HEARD BRYAN CHAPMAN 

628
00:24:49,686 --> 00:24:52,322
TALK ABOUT THIS, THIS SUMMER IN 

629
00:24:52,322 --> 00:24:53,623
MED INFO.

630
00:24:53,623 --> 00:24:55,258
MORE LITERATURE HAS BEEN 

631
00:24:55,258 --> 00:24:57,594
GENERATED THINKING ABOUT THE 

632
00:24:57,594 --> 00:24:59,696
POTENTIAL OF HEALTH INFORMATICS 

633
00:24:59,696 --> 00:25:06,236
AND THE DATA SCIENCE 

634
00:25:06,236 --> 00:25:11,174
INNOVATIONS AND PERPETUATING 

635
00:25:11,174 --> 00:25:13,343
EPISTEMIC INJUSTICES.

636
00:25:13,343 --> 00:25:15,011
CONVERSATIONAL A.I. AND THE 

637
00:25:15,011 --> 00:25:17,313
FACT THE PATIENT MAY NOT BE 

638
00:25:17,313 --> 00:25:18,448
ABLE TO ARTICULATE SOMETHING 

639
00:25:18,448 --> 00:25:20,350
LIKE A SYMPTOM IN A WAY THAT IS 

640
00:25:20,350 --> 00:25:22,285
UNDERSTOOD BY THE 

641
00:25:22,285 --> 00:25:23,586
CONVERSATIONAL A.I. AND THEN 

642
00:25:23,586 --> 00:25:28,424
END UP HAVING AN INAPPROPRIATE 

643
00:25:28,424 --> 00:25:29,759
EXCHANGE.

644
00:25:29,759 --> 00:25:31,628
AND PARTICULARLY THAT PATIENT 

645
00:25:31,628 --> 00:25:33,496
COULD END UP FEELING LIKE THEIR 

646
00:25:33,496 --> 00:25:35,164
EXPERIENCE IS NOT BEING 

647
00:25:35,164 --> 00:25:35,732
UNDERSTOOD.

648
00:25:35,732 --> 00:25:38,501
WHEN WE LOOK AT IT FROM THE 

649
00:25:38,501 --> 00:25:40,169
PERSPECTIVE OF GENERATIVE A.I., 

650
00:25:40,169 --> 00:25:42,038
OF COURSE GENERATIVE A.I. 

651
00:25:42,038 --> 00:25:43,506
DEPENDS VERY MUCH ON THE DATA 

652
00:25:43,506 --> 00:25:48,011
THAT THE TOOLS ARE TRAINED ON.

653
00:25:48,011 --> 00:25:51,681
SO THE ISSUANCE BEING THERE CAN 

654
00:25:51,681 --> 00:25:54,984
BE THAT EXISTING DATA, MAYBE 

655
00:25:54,984 --> 00:25:58,421
SERIOUSLY BY DUE TO LACK OF 

656
00:25:58,421 --> 00:26:00,056
GENDER, ETHIC, RACIAL, 

657
00:26:00,056 --> 00:26:00,823
RELIGIOUS DIVERSITY AMONG 

658
00:26:00,823 --> 00:26:01,491
OTHERS.

659
00:26:01,491 --> 00:26:04,761
SO THIS ENDS UP BEING A MATTER 

660
00:26:04,761 --> 00:26:06,362
OF TESTIMONIAL INJUSTICE.

661
00:26:06,362 --> 00:26:08,965
WE REALLY CAN THINK ABOUT THIS 

662
00:26:08,965 --> 00:26:11,834
AS MISSING OR SILENCING OF SOME 

663
00:26:11,834 --> 00:26:13,202
VOICES.

664
00:26:13,202 --> 00:26:15,705
AND SO WHEN WE THINK ABOUT IT 

665
00:26:15,705 --> 00:26:20,143
FROM THE PERSPECTIVE OF 

666
00:26:20,143 --> 00:26:21,544
INTERPRETIVE INJUSTICE THERE IS 

667
00:26:21,544 --> 00:26:24,213
A DUTCH RESEARCHER NAMED 

668
00:26:24,213 --> 00:26:26,282
GEORGIA POSEY WHO HAS BEEN 

669
00:26:26,282 --> 00:26:27,917
DOING SOME VERY INTERESTING 

670
00:26:27,917 --> 00:26:35,024
WRITINGS IN THIS AREA.

671
00:26:35,024 --> 00:26:37,327
SHE GIVES SOME EXAMPLES OF THE 

672
00:26:37,327 --> 00:26:39,195
POTENTIAL HARM THAT CAN COME 

673
00:26:39,195 --> 00:26:41,998
FROM MACHINE LEARNING AND 

674
00:26:41,998 --> 00:26:42,298
PHENOTYPING.

675
00:26:42,298 --> 00:26:45,535
SHE USES THE EXAMPLE OF 

676
00:26:45,535 --> 00:26:46,703
AUTOMATED PREDICTION DRUG 

677
00:26:46,703 --> 00:26:48,538
MONITORING PROGRAMS THAT 

678
00:26:48,538 --> 00:26:50,473
PREDICT PATIENT RISK OF 

679
00:26:50,473 --> 00:26:51,341
MISUSING OPIOIDS.

680
00:26:51,341 --> 00:26:55,678
SO WE CAN THINK ABOUT THAT FROM 

681
00:26:55,678 --> 00:26:58,715
THAT PARTICULAR PERSPECTIVE OF 

682
00:26:58,715 --> 00:27:02,051
REALLY HAVING SOME SYSTEMS OR 

683
00:27:02,051 --> 00:27:03,653
PHENOTYPE PRODUCE A RISK THAT 

684
00:27:03,653 --> 00:27:07,490
IS SEEN MORE AS THE GROUND 

685
00:27:07,490 --> 00:27:09,158
TRUTH RATHER THAN REALLY TAKING 

686
00:27:09,158 --> 00:27:11,761
INTO ACCOUNT WHAT THE PATIENT'S 

687
00:27:11,761 --> 00:27:12,996
EXPERIENCE OF THAT MIGHT 

688
00:27:12,996 --> 00:27:19,669
ACTUALLY BE.

689
00:27:19,669 --> 00:27:21,738
SO ALTHOUGH THERE HASN'T BEEN A 

690
00:27:21,738 --> 00:27:28,011
LOT OF ATTENTION IN THE 

691
00:27:28,011 --> 00:27:29,879
INFORMATIC AND DATA SCIENCE 

692
00:27:29,879 --> 00:27:32,448
LITERATURE, THROUGH THE LENS OF 

693
00:27:32,448 --> 00:27:34,083
EPISTEMIC INJUSTICE WE DO HAVE 

694
00:27:34,083 --> 00:27:35,985
MUCH LITERATURE THAT HAS THE 

695
00:27:35,985 --> 00:27:37,120
POTENTIAL TO CONTRIBUTE TO IT.

696
00:27:37,120 --> 00:27:40,923
WE CAN THINK ABOUT OUR BODY OF 

697
00:27:40,923 --> 00:27:42,792
LITERATURE ON HUMAN-CENTERED 

698
00:27:42,792 --> 00:27:44,394
DESIGN OF INNOVATIONS.

699
00:27:44,394 --> 00:27:45,628
THINKING ABOUT CITIZEN SCIENCE 

700
00:27:45,628 --> 00:27:46,529
APPROACHES.

701
00:27:46,529 --> 00:27:56,472
WE HAVE WORKED WITHIN HEALTH 

702
00:27:56,472 --> 00:27:58,775
INFORMATIC WORK OF PATIENT 

703
00:27:58,775 --> 00:28:02,011
KNOWLEDGE WORK INTO WAYS OF 

704
00:28:02,011 --> 00:28:02,245
KNOWING.

705
00:28:02,245 --> 00:28:05,782
OPEN NOTES CAN BE LOOKED AT AS 

706
00:28:05,782 --> 00:28:15,058
A STRATEGY FOR REALLY MAKING IT 

707
00:28:15,058 --> 00:28:17,627
POSSIBLE TO MITIGATE EPISTEMIC 

708
00:28:17,627 --> 00:28:19,262
INJUSTICE BY PROVIDING ACCESS 

709
00:28:19,262 --> 00:28:21,931
AND ALLOWING THE INDIVIDUAL TO 

710
00:28:21,931 --> 00:28:23,700
APPLY THEIR CAPACITY AS A 

711
00:28:23,700 --> 00:28:25,935
KNOWER.

712
00:28:25,935 --> 00:28:28,337
WE ALSO HAVE DIFFERENT TYPES OF 

713
00:28:28,337 --> 00:28:30,273
STRATEGIES THAT CAN BE FOCUSED 

714
00:28:30,273 --> 00:28:33,409
ON INCREASING CAPACITY FOR 

715
00:28:33,409 --> 00:28:35,044
COMPREHENSION ANALYSIS AND 

716
00:28:35,044 --> 00:28:36,312
INTERPRETATION OF DATA AND 

717
00:28:36,312 --> 00:28:38,881
INFORMATION.

718
00:28:38,881 --> 00:28:43,686
I'M GOING TO WALK THROUGH SOME 

719
00:28:43,686 --> 00:28:47,523
EXAMPLES OF MY OWN WORK.

720
00:28:47,523 --> 00:28:51,527
AND JUST VIEWING IT THROUGH, 

721
00:28:51,527 --> 00:28:52,495
VIEWING IT RETROSPECTIVELY 

722
00:28:52,495 --> 00:28:55,398
THROUGH THE LENS OF EPISTEMIC 

723
00:28:55,398 --> 00:28:55,932
INJUSTICE.

724
00:28:55,932 --> 00:28:58,401
SO I WANT TO B*E MAKE SURE IT'S 

725
00:28:58,401 --> 00:29:01,104
CLEAR THIS IS A RETROSPECTIVE 

726
00:29:01,104 --> 00:29:02,939
VIEW I WASN'T THINKING OF IT 

727
00:29:02,939 --> 00:29:05,007
FROM THE PHILOSOPHICAL 

728
00:29:05,007 --> 00:29:06,876
VIEWPOINT AT THE TIME I WAS 

729
00:29:06,876 --> 00:29:07,744
DOING THE RESEARCH.

730
00:29:07,744 --> 00:29:11,414
I WANT TO BRIEFLY ILLUSTRATE 

731
00:29:11,414 --> 00:29:13,049
THIS THROUGH A FEW DIFFERENT 

732
00:29:13,049 --> 00:29:14,016
PROJECTS.

733
00:29:14,016 --> 00:29:19,589
SO IN ADDITION TO THE SUPPORT 

734
00:29:19,589 --> 00:29:22,658
FOR THE TRAINING AT STANFORD 

735
00:29:22,658 --> 00:29:24,994
THIS WAS MY FIRST MONEY I GOT 

736
00:29:24,994 --> 00:29:26,162
FROM THE NATIONAL LIBRARY OF 

737
00:29:26,162 --> 00:29:28,397
MEDICINE.

738
00:29:28,397 --> 00:29:31,200
SO FOR MANY DECADES, THE NLM 

739
00:29:31,200 --> 00:29:34,871
HAS HAD AN INCREDIBLE HIV/AIDS 

740
00:29:34,871 --> 00:29:35,638
OUTREACH PROGRAM.

741
00:29:35,638 --> 00:29:38,207
AT THE TIME I WAS AT UNIVERSITY 

742
00:29:38,207 --> 00:29:40,476
OF CALIFORNIA, SAN FRANCISCO, 

743
00:29:40,476 --> 00:29:46,816
WHERE I MIGHT ANECDOTALLY ADD I 

744
00:29:46,816 --> 00:29:49,752
HIRED DR. JACKSON IN HER FIRST 

745
00:29:49,752 --> 00:29:50,319
FACULTY POSITION.

746
00:29:50,319 --> 00:29:51,988
BUT I HAD THE OPPORTUNITY 

747
00:29:51,988 --> 00:29:55,258
BECAUSE OUR SCHOOL WAS WORKING 

748
00:29:55,258 --> 00:29:57,994
WITH THE GLIDE METHODIST CHURCH 

749
00:29:57,994 --> 00:29:59,662
IN THE TENDERLOIN IN SAN 

750
00:29:59,662 --> 00:30:00,196
FRANCISCO.

751
00:30:00,196 --> 00:30:02,331
WE HAD A CLINIC THERE.

752
00:30:02,331 --> 00:30:05,168
I WAS FOCUSED ON PUTTING 

753
00:30:05,168 --> 00:30:06,335
INFORMATICS RESOURCES IN THE 

754
00:30:06,335 --> 00:30:08,638
CLINIC AND IT PROVIDED THE 

755
00:30:08,638 --> 00:30:09,338
PERFECT OPPORTUNITY BECAUSE 

756
00:30:09,338 --> 00:30:12,175
THIS WAS A HOMELESS CLINIC, 

757
00:30:12,175 --> 00:30:14,010
WHERE BESIDES BEING HOMELESS 

758
00:30:14,010 --> 00:30:17,513
MANY PEOPLE WERE HIV POSITIVE 

759
00:30:17,513 --> 00:30:19,649
AND HAD ISSUES, MENTAL HEALTH 

760
00:30:19,649 --> 00:30:21,250
ISSUES, ET CETERA.

761
00:30:21,250 --> 00:30:23,019
BUT WE RECEIVED A VERY SMALL 

762
00:30:23,019 --> 00:30:25,721
GRANT THROUGH THE OUTREACH 

763
00:30:25,721 --> 00:30:27,790
PROGRAM TO IMPLEMENT A 

764
00:30:27,790 --> 00:30:29,792
WEB-BASED INFORMATION RESOURCE 

765
00:30:29,792 --> 00:30:32,562
AT THE CHURCH AND ITS CLINIC.

766
00:30:32,562 --> 00:30:33,996
SO THINKING ABOUT THIS IN THE 

767
00:30:33,996 --> 00:30:36,132
PAST, WHAT WE ARE REALLY TRYING 

768
00:30:36,132 --> 00:30:38,034
TO DO IN THIS PARTICULAR 

769
00:30:38,034 --> 00:30:42,104
PROJECT IS REALLY TO ADDRESS 

770
00:30:42,104 --> 00:30:44,440
HERMENEUTICAL INJUSTICE IN 

771
00:30:44,440 --> 00:30:45,708
HIV/AIDS CARE AND SELF 

772
00:30:45,708 --> 00:30:46,008
MANAGEMENT.

773
00:30:46,008 --> 00:30:50,079
SO MUCH OF THE ISSUE WE WERE 

774
00:30:50,079 --> 00:30:51,981
DEALING WITH, ALTHOUGH WE 

775
00:30:51,981 --> 00:30:54,750
PROVIDED TAILORED ACCESS TO 

776
00:30:54,750 --> 00:30:55,952
HIGH QUALITY HIV/AIDS 

777
00:30:55,952 --> 00:30:58,054
INFORMATION SITES, MANY OF THEM 

778
00:30:58,054 --> 00:31:00,156
REALLY REQUIRED HIGH LITERACY 

779
00:31:00,156 --> 00:31:03,860
LEVELS BEYOND WHAT THE CLINIC 

780
00:31:03,860 --> 00:31:05,628
CLIENTELE HAD.

781
00:31:05,628 --> 00:31:07,263
SO WE REALLY NEEDED TO AUGMENT 

782
00:31:07,263 --> 00:31:12,201
WHAT WE WERE DOING WITH 

783
00:31:12,201 --> 00:31:12,869
TECHNOLOGY WITH HUMAN 

784
00:31:12,869 --> 00:31:15,204
INFORMATION NAVIGATORS AND WE 

785
00:31:15,204 --> 00:31:19,709
DID THIS THROUGH OUR NURSING 

786
00:31:19,709 --> 00:31:20,877
INFORMATIC STUDENTS WHO WORKED 

787
00:31:20,877 --> 00:31:22,478
WITH THE CLINIC TO GET PEOPLE 

788
00:31:22,478 --> 00:31:23,646
ONBOARD.

789
00:31:23,646 --> 00:31:26,249
I COULD SAY IT WAS INCREDIBLY 

790
00:31:26,249 --> 00:31:26,949
SUCCESSFUL.

791
00:31:26,949 --> 00:31:28,784
IT WAS A RELATIVELY SMALL 

792
00:31:28,784 --> 00:31:32,755
AMOUNT OF MONEY.

793
00:31:32,755 --> 00:31:35,625
BUT SOME INDIVIDUALS WITH HELP 

794
00:31:35,625 --> 00:31:37,727
FROM THEIR HUMAN INFORMATION 

795
00:31:37,727 --> 00:31:39,829
NAVIGATORS JUST GOT VERY 

796
00:31:39,829 --> 00:31:42,598
ENCHANTED WITH THE POWER THAT 

797
00:31:42,598 --> 00:31:44,467
THE ACCESS TO THESE RESOURCES 

798
00:31:44,467 --> 00:31:45,167
WERE GIVING THEM.

799
00:31:45,167 --> 00:31:47,470
AND A NUMBER OF THEM SOUGHT 

800
00:31:47,470 --> 00:31:49,605
FUTURE TRAINING IN THE FIELD OF 

801
00:31:49,605 --> 00:31:50,740
COMPUTER TECHNOLOGY.

802
00:31:50,740 --> 00:31:54,110
SO IT ACTUALLY ENDED UP BEING 

803
00:31:54,110 --> 00:31:55,645
LIFE-CHANGING MOVING THEM FROM 

804
00:31:55,645 --> 00:32:00,583
BEING HOMELESS TO BEING 

805
00:32:00,583 --> 00:32:02,218
EMPLOYED AND HOUSED AND SOME OF 

806
00:32:02,218 --> 00:32:03,619
THOSE KINDS OF THINGS.

807
00:32:03,619 --> 00:32:05,454
SO THIS REALLY, WHEN I THINK 

808
00:32:05,454 --> 00:32:07,590
ABOUT MY WORK IN THE COMMUNITY, 

809
00:32:07,590 --> 00:32:10,927
THIS IS WHERE I FEEL LIKE THE 

810
00:32:10,927 --> 00:32:13,529
FIRST START WAS WITH GETTING 

811
00:32:13,529 --> 00:32:15,631
THIS FUNDING, PROBABLY IN ABOUT 

812
00:32:15,631 --> 00:32:18,367
1998 OR SO.

813
00:32:18,367 --> 00:32:22,305
WHEN I THINK ABOUT IT FROM THE 

814
00:32:22,305 --> 00:32:27,109
PERSPECTIVE OF MY TIME AT 

815
00:32:27,109 --> 00:32:30,780
COLUMBIA, ONE OF THE FIRST 

816
00:32:30,780 --> 00:32:35,084
PROJECTS THAT I DID WORKING AT 

817
00:32:35,084 --> 00:32:36,252
COLUMBIA UNIVERSITY MEDICAL 

818
00:32:36,252 --> 00:32:38,621
CENTER, WHICH IS IN THE MIDDLE 

819
00:32:38,621 --> 00:32:40,690
OF WASHINGTON HEIGHTS.

820
00:32:40,690 --> 00:32:43,492
A VERY VIBRANT PRIMARILY LATINO 

821
00:32:43,492 --> 00:32:44,660
IMMIGRANT COMMUNITY, WE WERE 

822
00:32:44,660 --> 00:32:47,797
FUNDED IN THE FIRST ROUND OF 

823
00:32:47,797 --> 00:32:49,899
THE CLINICAL AND TRANSLATIONAL 

824
00:32:49,899 --> 00:32:50,866
SCIENCE AWARDS.

825
00:32:50,866 --> 00:32:54,103
AND THE FIRST OPPORTUNITY TO 

826
00:32:54,103 --> 00:32:56,472
GET A SUPPLEMENT TO THAT 

827
00:32:56,472 --> 00:32:57,306
INITIAL GRANT.

828
00:32:57,306 --> 00:32:59,175
IF YOU CAN REMEMBER AT THAT 

829
00:32:59,175 --> 00:33:02,812
POINT IN TIME, ALL CTSA'S WERE 

830
00:33:02,812 --> 00:33:06,315
REQUIRED TO HAVE A COMMUNITY 

831
00:33:06,315 --> 00:33:06,716
ENGAGEMENT COURSE.

832
00:33:06,716 --> 00:33:07,283
SO THAT WAS PART OF THE 

833
00:33:07,283 --> 00:33:07,984
BEGINNING.

834
00:33:07,984 --> 00:33:10,786
BUT THE FIRST STUDY WE DID AS 

835
00:33:10,786 --> 00:33:13,122
PART OF OUR SUPPLEMENT WAS 

836
00:33:13,122 --> 00:33:16,125
REALLY TO UNDERSTAND BARRIERS, 

837
00:33:16,125 --> 00:33:18,027
ENABLERS AND INCENTIVES FOR 

838
00:33:18,027 --> 00:33:19,962
RESEARCH PARTICIPATION FROM THE 

839
00:33:19,962 --> 00:33:23,199
PERSPECTIVE OF OUR AM BULATORY 

840
00:33:23,199 --> 00:33:24,100
RESEARCH CARE NETWORK.

841
00:33:24,100 --> 00:33:26,669
SO IN THIS PARTICULAR STUDY, WE 

842
00:33:26,669 --> 00:33:28,537
WORKED WITH PEOPLE IN THE 

843
00:33:28,537 --> 00:33:29,805
COMMUNITY, COMMUNITY MEMBERS, 

844
00:33:29,805 --> 00:33:32,375
CLINICIANS IN THE COMMUNITY MET 

845
00:33:32,375 --> 00:33:35,678
WITH POLICY MAKERS IN THE 

846
00:33:35,678 --> 00:33:36,579
COMMUNITY AS WELL.

847
00:33:36,579 --> 00:33:44,420
I REALLY CAME AWAY WITH REALLY 

848
00:33:44,420 --> 00:33:46,288
IMPORTANT LESSONS I HAVE TAKEN 

849
00:33:46,288 --> 00:33:47,423
FORWARD IN MY PROGRAM OF 

850
00:33:47,423 --> 00:33:48,424
RESEARCH.

851
00:33:48,424 --> 00:33:49,825
THAT IS, THINKING ABOUT ANY 

852
00:33:49,825 --> 00:33:51,460
STUDY THAT WE DO, THAT IT 

853
00:33:51,460 --> 00:33:53,095
REALLY NEEDS TO HAVE MULTIPLE 

854
00:33:53,095 --> 00:33:54,263
MESSAGES.

855
00:33:54,263 --> 00:33:57,600
SO IN ADDITION TO YOUR 

856
00:33:57,600 --> 00:33:58,768
SCIENTIFIC PUBLICATION, IT'S 

857
00:33:58,768 --> 00:34:00,136
CRITICALLY IMPORTANT THAT YOU 

858
00:34:00,136 --> 00:34:01,771
HAVE A MESSAGE FOR THE 

859
00:34:01,771 --> 00:34:02,938
COMMUNITY FROM WHICH THE 

860
00:34:02,938 --> 00:34:04,040
PARTICIPANTS CAME.

861
00:34:04,040 --> 00:34:05,441
IT'S IMPORTANT THAT THE 

862
00:34:05,441 --> 00:34:07,943
CLINICIANS IN THE COMMUNITY 

863
00:34:07,943 --> 00:34:09,845
HAVE INFORMATION THAT THEY CAN 

864
00:34:09,845 --> 00:34:12,848
USE AS WELL.

865
00:34:12,848 --> 00:34:15,317
IN THEIR CARE PROVISION.

866
00:34:15,317 --> 00:34:17,486
AND ALSO THINKING ABOUT OUR 

867
00:34:17,486 --> 00:34:18,854
LOCAL POLICY MAKERS BECAUSE 

868
00:34:18,854 --> 00:34:22,391
THEY WANT TO DO RIGHT BY THEIR 

869
00:34:22,391 --> 00:34:24,026
CONSTITUENTS AND PROVIDING 

870
00:34:24,026 --> 00:34:25,861
SCIENTIFIC DATA TO THEM THAT 

871
00:34:25,861 --> 00:34:27,963
THEY CAN USE FOR THEIR WORK IS 

872
00:34:27,963 --> 00:34:29,465
VITAL AS WELL.

873
00:34:29,465 --> 00:34:34,603
AND SO I'VE KIND OF CONTINUED 

874
00:34:34,603 --> 00:34:37,273
THOSE IDEAS MOVING FORWARD IN 

875
00:34:37,273 --> 00:34:38,908
MY RESEARCH WHERE I REALLY HAVE 

876
00:34:38,908 --> 00:34:40,376
THE OPPORTUNITY TO DO IT AT 

877
00:34:40,376 --> 00:34:44,480
SCALE IS IN THE STUDY THAT DR. 

878
00:34:44,480 --> 00:34:46,382
SHERRY MENTIONED.

879
00:34:46,382 --> 00:34:48,017
WHICH WAS SEVERAL GRANTS FROM 

880
00:34:48,017 --> 00:34:51,854
ARK AND A PROJECT CALLED THE 

881
00:34:51,854 --> 00:34:53,289
WASHINGTON HEIGHTS INWOOD 

882
00:34:53,289 --> 00:34:56,292
INFORMATIC INFRASTRUCTURE FOR 

883
00:34:56,292 --> 00:34:56,826
COMPARATIVE EFFECTIVENESS 

884
00:34:56,826 --> 00:34:57,259
RESEARCH.

885
00:34:57,259 --> 00:35:02,598
OR WE CALL IT WICER FOR SORT.

886
00:35:02,598 --> 00:35:05,167
BUT THE IDEA FLT PROJECT WAS 

887
00:35:05,167 --> 00:35:07,303
REALLY THE BRAIN CHILD OF ADAM 

888
00:35:07,303 --> 00:35:10,139
WILCOX NOW A PROFESSOR IN 

889
00:35:10,139 --> 00:35:12,908
WASH-U IN ST. LOUIS.

890
00:35:12,908 --> 00:35:18,314
REALLY THINK ABOUT, IF YOU DID 

891
00:35:18,314 --> 00:35:21,150
THE FRAMINGHAM STUDY BUT WITH 

892
00:35:21,150 --> 00:35:22,618
INFORMATIC TOOLS IN THE 

893
00:35:22,618 --> 00:35:24,820
COMMUNITY OF WASHINGTON 

894
00:35:24,820 --> 00:35:27,523
HEIGHTS, INSTEAD OF FRAMINGHAM.

895
00:35:27,523 --> 00:35:28,924
SO THE BASIC IDEA WAS THINKING 

896
00:35:28,924 --> 00:35:30,860
ABOUT IT FROM THE PERSPECTIVE 

897
00:35:30,860 --> 00:35:33,195
OF A PATIENT, THEY HAVE MANY 

898
00:35:33,195 --> 00:35:35,297
DIFFERENT DATA SOURCES, 

899
00:35:35,297 --> 00:35:36,932
INPATIENT, OUTPATIENT, HOME 

900
00:35:36,932 --> 00:35:38,567
CARE, MAYBE LONG-TERM CARE.

901
00:35:38,567 --> 00:35:41,303
THEY COULD BE IN A TRIAL, 

902
00:35:41,303 --> 00:35:42,104
SURVEY DATA.

903
00:35:42,104 --> 00:35:46,208
WE WERE GOING TO PULL TOGETHER 

904
00:35:46,208 --> 00:35:47,810
THESE DISPARATE INFORMATION AND 

905
00:35:47,810 --> 00:35:50,613
DATA RESOURCES INTO A RESEARCH 

906
00:35:50,613 --> 00:35:52,248
DATA WAREHOUSE.

907
00:35:52,248 --> 00:35:54,817
CREATE A TOOL WHICH WAS CALLED 

908
00:35:54,817 --> 00:35:56,685
RESEARCH DATA EXPLORER THAT THE 

909
00:35:56,685 --> 00:35:58,554
RESEARCHERS CAN USE TO IMPROVE 

910
00:35:58,554 --> 00:36:02,758
THE HEALTH OF THE COMMUNITY.

911
00:36:02,758 --> 00:36:04,894
AND WHERE MY CONTRIBUTION TO 

912
00:36:04,894 --> 00:36:07,029
THE PROJECT REALLY COMES IN IS 

913
00:36:07,029 --> 00:36:09,098
IN THIS AREA OVER HERE, WHICH 

914
00:36:09,098 --> 00:36:12,668
IS REALLY THINKING ABOUT MAKING 

915
00:36:12,668 --> 00:36:13,836
SURE THAT WE INTEGRATE THE 

916
00:36:13,836 --> 00:36:14,737
COMMUNITY.

917
00:36:14,737 --> 00:36:18,507
SO THIS WASN'T THE ORIGINAL 

918
00:36:18,507 --> 00:36:21,877
INTENT WAS NOT NECESSARILY TO 

919
00:36:21,877 --> 00:36:23,045
RETURN DATA TO THE COMMUNITY 

920
00:36:23,045 --> 00:36:26,749
BUT I FELT IT WAS VITALLY 

921
00:36:26,749 --> 00:36:28,250
IMPORTANT GIVEN WHAT I HAD 

922
00:36:28,250 --> 00:36:30,452
LEARNED IN OUR EARLIER ACN 

923
00:36:30,452 --> 00:36:34,990
STUDY AND THE FACT THAT WE HAD 

924
00:36:34,990 --> 00:36:36,158
SPENT TREMENDOUS RESOURCES 

925
00:36:36,158 --> 00:36:40,262
COLLECTING DATA FROM ALMOST 

926
00:36:40,262 --> 00:36:41,664
6,000 LATINOS, PRIMARILY IN 

927
00:36:41,664 --> 00:36:44,033
SPANISH, SO PEOPLE WHO HAVE 

928
00:36:44,033 --> 00:36:46,368
TYPICALLY BEEN NOT PRESENT IN 

929
00:36:46,368 --> 00:36:47,770
RECENT STUDIES, THAT I WANTED 

930
00:36:47,770 --> 00:36:49,672
TO MAKE SURE THERE WAS A WAY 

931
00:36:49,672 --> 00:36:51,273
THAT THE RESEARCH PARTICIPANTS, 

932
00:36:51,273 --> 00:36:53,909
AS WELL AS THE BROADER 

933
00:36:53,909 --> 00:36:55,578
COMMUNITY AND THE POLICY MAKERS 

934
00:36:55,578 --> 00:36:57,713
IN THE COMMUNITY COULD HAVE 

935
00:36:57,713 --> 00:36:59,582
ACCESS TO THAT DATA TO DO THE 

936
00:36:59,582 --> 00:37:03,118
WORK THAT THEY NEEDED TO DO.

937
00:37:03,118 --> 00:37:06,488
I KNEW FROM THE PERSPECTIVE OF 

938
00:37:06,488 --> 00:37:08,524
THINKING ABOUT GIVING IT BACK 

939
00:37:08,524 --> 00:37:13,462
TO THE COMMUNITY, WE HAD DATA 

940
00:37:13,462 --> 00:37:15,998
ON ALMOST 6,000 PEOPLE.

941
00:37:15,998 --> 00:37:17,633
WE KNEW THAT THE MAJORITY OF 

942
00:37:17,633 --> 00:37:19,835
THE PEOPLE HAD LIMITED HEALTH 

943
00:37:19,835 --> 00:37:20,903
LITERACY.

944
00:37:20,903 --> 00:37:22,638
SO WE REALLY HAD TO THINK ABOUT 

945
00:37:22,638 --> 00:37:25,774
WHAT WOULD BE THE APPROPRIATE 

946
00:37:25,774 --> 00:37:27,643
STRATEGY AND SO IT MADE SENSE 

947
00:37:27,643 --> 00:37:29,945
FROM MY PERSPECTIVE TO REALLY 

948
00:37:29,945 --> 00:37:32,281
THINK ABOUT HOW WOULD WE 

949
00:37:32,281 --> 00:37:33,716
APPROACH THIS THROUGH VISUAL 

950
00:37:33,716 --> 00:37:36,785
COMMUNICATION?

951
00:37:36,785 --> 00:37:38,887
AND BY WHAT I'M TALKING ABOUT 

952
00:37:38,887 --> 00:37:41,023
HERE IS CONVEYANCE OF IDEAS AND 

953
00:37:41,023 --> 00:37:41,957
INFORMATION AND FORMS THAT 

954
00:37:41,957 --> 00:37:44,760
COULD BE SEEN, COMPREHENDED ON, 

955
00:37:44,760 --> 00:37:46,862
ACTED ON FOR SELF MANAGEMENT 

956
00:37:46,862 --> 00:37:48,364
AND COMMUNICATION WITH 

957
00:37:48,364 --> 00:37:49,198
HEALTHCARE PROVIDERS.

958
00:37:49,198 --> 00:37:51,934
IT WAS IMPORTANT IT BE 

959
00:37:51,934 --> 00:37:54,303
UNDERSTOOD BY INDIVIDUALS WITH 

960
00:37:54,303 --> 00:37:55,404
VARYING LEVELS OF HEALTH 

961
00:37:55,404 --> 00:37:56,205
LITERACY.

962
00:37:56,205 --> 00:37:57,840
WE HAD TO MAKE SURE THAT IT 

963
00:37:57,840 --> 00:38:01,143
WOULD BE COMPREHENSIBLE IN BOTH 

964
00:38:01,143 --> 00:38:06,882
ENGLISH AND SPANISH.

965
00:38:06,882 --> 00:38:11,587
WE UNDERTOOK A HUMAN-CENTERED 

966
00:38:11,587 --> 00:38:15,090
PARTICIPATORY DESIGN OF 

967
00:38:15,090 --> 00:38:16,725
INFOGRAPHICS FOR INCORPORATING 

968
00:38:16,725 --> 00:38:18,060
COMMUNITY MEMBERS LIVED 

969
00:38:18,060 --> 00:38:19,495
EXPERIENCE AND THIS WOULD BE AN 

970
00:38:19,495 --> 00:38:23,232
EXAMPLE OF FACILITATING 

971
00:38:23,232 --> 00:38:24,133
TESTIMONIAL INJUSTICE.

972
00:38:24,133 --> 00:38:28,570
SO WE DID ABOUT A DOZEN FOCUS 

973
00:38:28,570 --> 00:38:30,906
GROUPS, EXCUSE ME, 

974
00:38:30,906 --> 00:38:31,874
PARTICIPATORY DESIGN SESSIONS 

975
00:38:31,874 --> 00:38:34,677
IN THE COMMUNITY.

976
00:38:34,677 --> 00:38:36,779
MOST OF THEM IN SPANISH TO 

977
00:38:36,779 --> 00:38:38,380
ITERATE THE DESIGNS FOR WHAT WE 

978
00:38:38,380 --> 00:38:40,249
WOULD USE TO RETURN THAT DATA 

979
00:38:40,249 --> 00:38:42,184
TO THE COMMUNITY.

980
00:38:42,184 --> 00:38:47,089
AND SO, FROM THE PERSPECTIVE OF 

981
00:38:47,089 --> 00:38:49,425
HERMENEUTICAL INJUSTICE, WE 

982
00:38:49,425 --> 00:38:52,928
WERE TRYING TO MITIGATE 

983
00:38:52,928 --> 00:38:54,830
HERMENEUTICAL INJUSTICE USING 

984
00:38:54,830 --> 00:38:56,899
THE INFOGRAPHICS AND A TOOL TO 

985
00:38:56,899 --> 00:38:58,767
TAILOR THEM SO WE COULD RETURN 

986
00:38:58,767 --> 00:38:59,468
INDIVIDUAL RESULTS TO COMMUNITY 

987
00:38:59,468 --> 00:39:00,202
MEMBERS.

988
00:39:00,202 --> 00:39:02,037
AND THIS WOULD AUGMENT WHAT WE 

989
00:39:02,037 --> 00:39:04,406
DID IN TERMS OF SHARING 

990
00:39:04,406 --> 00:39:05,941
AGGREGATE RESULTS WITH POLICY 

991
00:39:05,941 --> 00:39:08,677
MAKERS IN THE COMMUNITY WITH 

992
00:39:08,677 --> 00:39:11,013
NEW YORK PRESBYTERIAN HOSPITAL 

993
00:39:11,013 --> 00:39:13,349
SO THEY COULD USE IT TO INFORM 

994
00:39:13,349 --> 00:39:14,950
THEIR SERVICE DELIVERY IN THOSE 

995
00:39:14,950 --> 00:39:17,119
TYPES AND THINGS.

996
00:39:17,119 --> 00:39:19,288
AND ALSO INFORMATION THAT WE 

997
00:39:19,288 --> 00:39:22,591
WOULD GIVE, WHICH WE COULD MAKE 

998
00:39:22,591 --> 00:39:23,292
AVAILABLE TO COMMUNITY-BASED 

999
00:39:23,292 --> 00:39:24,326
ORGANIZATIONS FOR THE WORK THEY 

1000
00:39:24,326 --> 00:39:24,927
WERE DOING.

1001
00:39:24,927 --> 00:39:28,464
SO I JUST WANT TO GIVE YOU SOME 

1002
00:39:28,464 --> 00:39:32,968
EXAMPLES OF SOME OF THE THINGS 

1003
00:39:32,968 --> 00:39:36,638
THAT WE DEVELOPED.

1004
00:39:36,638 --> 00:39:39,475
SO ONCE AGAIN, WE REALLY USED 

1005
00:39:39,475 --> 00:39:41,810
THE PARTICIPATORY DESIGN 

1006
00:39:41,810 --> 00:39:43,846
PROCESS TO MAKE SURE THAT WE 

1007
00:39:43,846 --> 00:39:45,948
HAD THE INPUT OF THE COMMUNITY 

1008
00:39:45,948 --> 00:39:47,683
MEMBERS AND WE ARE WORKING ON 

1009
00:39:47,683 --> 00:39:48,550
THE CO-DESIGN.

1010
00:39:48,550 --> 00:39:51,186
AND THEN THE INFOGRAPHICS COULD 

1011
00:39:51,186 --> 00:39:53,889
BE THOUGHT OF AS PART OF A 

1012
00:39:53,889 --> 00:39:55,524
STRATEGY TO MITIGATE 

1013
00:39:55,524 --> 00:39:57,693
HERMENEUTICAL INJUSTICE BY 

1014
00:39:57,693 --> 00:39:59,027
PROVIDING A COMMON 

1015
00:39:59,027 --> 00:40:00,529
COMMUNICATION TOOL.

1016
00:40:00,529 --> 00:40:03,031
SO ONE OF THE THINGS WE WANTED 

1017
00:40:03,031 --> 00:40:07,770
TO DO IS TO BE ABLE TO SHARE 

1018
00:40:07,770 --> 00:40:11,173
SOME COMPARISONS BETWEEN 

1019
00:40:11,173 --> 00:40:12,541
INDIVIDUALS, COMPARISONS WITH 

1020
00:40:12,541 --> 00:40:14,410
OTHER WOMEN, FOR EXAMPLE, IN 

1021
00:40:14,410 --> 00:40:18,013
THE AGE GROUP.

1022
00:40:18,013 --> 00:40:19,882
SO THAT INDIVIDUALS COULD HAVE 

1023
00:40:19,882 --> 00:40:21,283
AN UNDERSTANDING AGAINST OTHERS 

1024
00:40:21,283 --> 00:40:22,684
IN HOW THEY WERE DOING.

1025
00:40:22,684 --> 00:40:30,559
THIS IS AN EXAMPLE OF A PSYCHO 

1026
00:40:30,559 --> 00:40:31,827
METRICALLY SOUND FATIGUE 

1027
00:40:31,827 --> 00:40:36,765
MEASURE.

1028
00:40:36,765 --> 00:40:39,401
THE NOTION OF FEELING RUN DOWN.

1029
00:40:39,401 --> 00:40:42,771
WE ALSO TRIED TO COMMUNICATE 

1030
00:40:42,771 --> 00:40:43,972
OVERALL HEALTH.

1031
00:40:43,972 --> 00:40:48,110
WE DID THIS THROUGH THE USE OF 

1032
00:40:48,110 --> 00:40:49,878
ICON ARRAYS.

1033
00:40:49,878 --> 00:40:52,014
FOR MOST INSTANCES THE ICON 

1034
00:40:52,014 --> 00:40:53,682
ARRAYS DIDN'T WORK VERY WELL.

1035
00:40:53,682 --> 00:40:55,551
BUT THEY CERTAINLY WORKED FINE 

1036
00:40:55,551 --> 00:40:57,152
IN USING STARS FOR OVERALL 

1037
00:40:57,152 --> 00:40:57,753
HEALTH.

1038
00:40:57,753 --> 00:40:59,955
SO AS YOU CAN IMAGINE, PEOPLE 

1039
00:40:59,955 --> 00:41:02,291
WERE QUITE ACCUSTOMED TO SEEING 

1040
00:41:02,291 --> 00:41:04,426
STARS FOR THINGS SUCH AS 

1041
00:41:04,426 --> 00:41:06,061
RESTAURANTS AND MOVIES AND SOME 

1042
00:41:06,061 --> 00:41:07,963
OF THOSE KINDS OF THINGS.

1043
00:41:07,963 --> 00:41:09,431
SO ONCE AGAIN WE WERE WANTING 

1044
00:41:09,431 --> 00:41:11,266
TO GIVE PEOPLE THEIR INDIVIDUAL 

1045
00:41:11,266 --> 00:41:14,903
DATA AND LET THEM KNOW HOW IT 

1046
00:41:14,903 --> 00:41:17,306
COMPARED TO OTHER PEOPLE OF 

1047
00:41:17,306 --> 00:41:22,611
THEIR GENDER AND AGE.

1048
00:41:22,611 --> 00:41:25,647
THIS WAS, WE INCORPORATED A 

1049
00:41:25,647 --> 00:41:27,816
NUMBER OF PATIENT-REPORTED 

1050
00:41:27,816 --> 00:41:28,684
OUTCOMES, MEASUREMENT, 

1051
00:41:28,684 --> 00:41:30,319
INFORMATION SYSTEM, THE PROMISE 

1052
00:41:30,319 --> 00:41:33,856
MEASURES WHICH ARE VERY 

1053
00:41:33,856 --> 00:41:36,458
FREQUENTLY USED COMMON DATA 

1054
00:41:36,458 --> 00:41:40,262
ELEMENT FOR NIH STUDIES.

1055
00:41:40,262 --> 00:41:45,968
AND IN THIS, EVERYTHING IS 

1056
00:41:45,968 --> 00:41:47,836
MEANED HAVING 50 AS AVERAGE.

1057
00:41:47,836 --> 00:41:50,873
THE WAY THE PROMIS MEASURES 

1058
00:41:50,873 --> 00:41:53,408
WORK, IF YOU HAVE MORE OF 

1059
00:41:53,408 --> 00:41:55,511
WHAT'S GIVEN OF THE PARTICULAR 

1060
00:41:55,511 --> 00:41:56,678
THING BEING MEASURED, IT MEANS 

1061
00:41:56,678 --> 00:41:57,846
YOU HAVE MORE OF THAT.

1062
00:41:57,846 --> 00:42:01,450
SO IN THIS INSTANCE, WE ARE 

1063
00:42:01,450 --> 00:42:04,052
USING A NUMBER LINE, WE ARE 

1064
00:42:04,052 --> 00:42:08,390
USING GREEN AND RED COLORS.

1065
00:42:08,390 --> 00:42:09,958
GREEN FOR BETTER.

1066
00:42:09,958 --> 00:42:11,426
RED FOR WORSE.

1067
00:42:11,426 --> 00:42:13,862
AND ALSO SPECIFICALLY POINTING 

1068
00:42:13,862 --> 00:42:15,931
OUT WHERE THEIR SYMPTOM SCORE 

1069
00:42:15,931 --> 00:42:17,599
IS.

1070
00:42:17,599 --> 00:42:19,968
IT WAS PRETTY INTERESTING IN 

1071
00:42:19,968 --> 00:42:25,073
LOOKING AT THE SELF-REPORTED 

1072
00:42:25,073 --> 00:42:26,909
SYMPTOMS, OVER TIME.

1073
00:42:26,909 --> 00:42:30,512
AND AGAINST IN TERMS OF THE 

1074
00:42:30,512 --> 00:42:32,314
PROMIS MEASURES IS THE ONLY 

1075
00:42:32,314 --> 00:42:35,083
THING WHERE, AS A WHOLE, OUR 

1076
00:42:35,083 --> 00:42:38,387
SAMPLE ENDED UP BEING WORSE IS 

1077
00:42:38,387 --> 00:42:39,721
IN SLEEP DISTURBANCE.

1078
00:42:39,721 --> 00:42:43,992
THE STUDY WAS OVER A DECADE AGO.

1079
00:42:43,992 --> 00:42:46,828
NOW EVERY DAY IT SEEMS WE KNOW 

1080
00:42:46,828 --> 00:42:48,730
HOW IMPORTANT SLEEP DISTURBANCE 

1081
00:42:48,730 --> 00:42:50,832
IS TO SO MANY THINGS THAT ARE 

1082
00:42:50,832 --> 00:42:53,535
GOING ON IN PEOPLE'S HEALTH.

1083
00:42:53,535 --> 00:42:59,841
IN ADDITION TO WANTING TO USE 

1084
00:42:59,841 --> 00:43:01,910
VISUAL COMMUNICATION TO LET 

1085
00:43:01,910 --> 00:43:03,812
PEOPLE KNOW HOW THEY COMPARE TO 

1086
00:43:03,812 --> 00:43:06,348
OTHER PEOPLE OF THEIR AGE AND 

1087
00:43:06,348 --> 00:43:08,216
GENDER AND FOR MUCH OF THIS WE 

1088
00:43:08,216 --> 00:43:09,952
WERE USING OUR OWN DATA IN THE 

1089
00:43:09,952 --> 00:43:11,019
COMMUNITY.

1090
00:43:11,019 --> 00:43:14,790
SO IN OTHER INSTANCES THAT ARE 

1091
00:43:14,790 --> 00:43:16,625
DOING THAT COMPARISON BECAUSE 

1092
00:43:16,625 --> 00:43:18,226
MAYBE EVERYONE IN THE COMMUNITY 

1093
00:43:18,226 --> 00:43:20,162
WAS TRUE.

1094
00:43:20,162 --> 00:43:21,530
LOW VEGETABLE CONSUMPTION, 

1095
00:43:21,530 --> 00:43:22,965
LOWER THAN AVERAGE PHYSICAL 

1096
00:43:22,965 --> 00:43:23,865
ACTIVITY.

1097
00:43:23,865 --> 00:43:26,168
JUST KNOWING HOW YOU DO AGAINST 

1098
00:43:26,168 --> 00:43:27,603
EVERYONE ELSE MAY NOT BE 

1099
00:43:27,603 --> 00:43:28,737
HELPFUL FOR ALL THINGS.

1100
00:43:28,737 --> 00:43:31,440
SO WE ALSO WANTED TO 

1101
00:43:31,440 --> 00:43:33,709
COMMUNICATE HOW PEOPLE COMPARE 

1102
00:43:33,709 --> 00:43:35,344
WITH CRITERION.

1103
00:43:35,344 --> 00:43:37,446
IN THIS INSTANCE WE HAD 

1104
00:43:37,446 --> 00:43:39,381
MEASURES OF BODY MASS INDEX.

1105
00:43:39,381 --> 00:43:40,649
SO ONCE AGAIN, YOU SEE THE 

1106
00:43:40,649 --> 00:43:43,085
NOTION OF A NUMBER LINE THAT 

1107
00:43:43,085 --> 00:43:46,021
HAS CONTINUED TO BE A GOOD WAY 

1108
00:43:46,021 --> 00:43:47,856
TO REPRESENT DIFFERENT TYPES OF 

1109
00:43:47,856 --> 00:43:49,491
DATA WE FOUND IN OUR WORK 

1110
00:43:49,491 --> 00:43:51,126
THROUGH THE YEARS.

1111
00:43:51,126 --> 00:43:52,661
BUT WE NOT ONLY HAVE THE NUMBER 

1112
00:43:52,661 --> 00:43:55,597
LINE, WE HAVE THE WORDS THAT 

1113
00:43:55,597 --> 00:43:57,232
DEFINE WHAT THOSE AREAS ARE.

1114
00:43:57,232 --> 00:44:00,502
BUT WE ALSO HAVE THE BODY 

1115
00:44:00,502 --> 00:44:03,038
SHAPES TO GIVE AN IDEA WHAT 

1116
00:44:03,038 --> 00:44:04,740
THOSE NUMBERS MIGHT MEAN.

1117
00:44:04,740 --> 00:44:07,075
WE HIGHLIGHT WHAT THE 

1118
00:44:07,075 --> 00:44:09,845
INDIVIDUAL'S WEIGHT OR B.M.I. 

1119
00:44:09,845 --> 00:44:11,713
IS IN SEVERAL DIFFERENT WAYS.

1120
00:44:11,713 --> 00:44:15,484
AND THEN WE ALSO INCLUDED A 

1121
00:44:15,484 --> 00:44:19,588
DEFINITION ALONG WITH IT AS A 

1122
00:44:19,588 --> 00:44:23,558
WAY OF COMMUNICATING B.M.I.

1123
00:44:23,558 --> 00:44:28,630
I ALSO VERY MUCH WANTED TO HAVE 

1124
00:44:28,630 --> 00:44:31,433
A WAY TO COMMUNICATING 

1125
00:44:31,433 --> 00:44:34,269
DIFFERENT ASPECTS OF HEALTH IN 

1126
00:44:34,269 --> 00:44:35,437
A COMMON VISUAL.

1127
00:44:35,437 --> 00:44:38,940
AND THIS IS ACTUALLY A PRETTY 

1128
00:44:38,940 --> 00:44:41,710
CHALLENGING, AT LEAST SOMEWHAT 

1129
00:44:41,710 --> 00:44:43,345
CHALLENGING PROBLEM, BECAUSE IN 

1130
00:44:43,345 --> 00:44:44,980
SOME INSTANCES IT'S EASY TO 

1131
00:44:44,980 --> 00:44:47,115
COMPARE THINGS THAT HAVE A 

1132
00:44:47,115 --> 00:44:49,217
COMMON DENOMINATOR.

1133
00:44:49,217 --> 00:44:53,188
WE USED A LOT OF CDC 30-DAY 

1134
00:44:53,188 --> 00:44:55,791
MEASURES SO IT WAS EASY TO SHOW 

1135
00:44:55,791 --> 00:44:56,425
THOSE TOGETHER.

1136
00:44:56,425 --> 00:44:58,060
BUT WHEN WE WERE TALKING ABOUT 

1137
00:44:58,060 --> 00:45:02,864
THESE TYPES OF THINGS, THEY HAD 

1138
00:45:02,864 --> 00:45:03,999
A DIFFERENT DENOMINATOR.

1139
00:45:03,999 --> 00:45:06,835
WE WANTED TO SHOW PHYSICAL 

1140
00:45:06,835 --> 00:45:07,969
ACTIVITY, OVERALL HEALTH, 

1141
00:45:07,969 --> 00:45:09,838
MENTAL HEALTH, FRUIT AND 

1142
00:45:09,838 --> 00:45:10,972
VEGETABLE CONSUMPTION AND 

1143
00:45:10,972 --> 00:45:13,075
WANTED TO COMPARE WITH IDEAL.

1144
00:45:13,075 --> 00:45:16,545
WE WENT THROUGH MANY ITERATIONS 

1145
00:45:16,545 --> 00:45:19,347
OF THIS AND THIS ENDED UP BEING 

1146
00:45:19,347 --> 00:45:20,215
THE FINAL VISUALIZATION WE CAME 

1147
00:45:20,215 --> 00:45:21,917
UP WITH.

1148
00:45:21,917 --> 00:45:23,585
AND ONE OF THE THINGS THAT'S 

1149
00:45:23,585 --> 00:45:26,788
VERY HARD IS PEOPLE HAVE 

1150
00:45:26,788 --> 00:45:27,689
DIFFICULTY IMAGINING A 

1151
00:45:27,689 --> 00:45:28,457
PROPORTION.

1152
00:45:28,457 --> 00:45:31,693
SO YOU SEE THAT LITTLE FRUIT 

1153
00:45:31,693 --> 00:45:32,661
AND VEGETABLE CONSUMPTION.

1154
00:45:32,661 --> 00:45:34,529
IT'S HARD FOR SOMEONE WITHOUT 

1155
00:45:34,529 --> 00:45:35,831
HAVING THE DOTTED LINES AROUND 

1156
00:45:35,831 --> 00:45:39,634
IT TO GET A GOOD IDEA OF HOW 

1157
00:45:39,634 --> 00:45:41,503
FAR AWAY THEY ARE FROM THE 

1158
00:45:41,503 --> 00:45:41,703
IDEAL.

1159
00:45:41,703 --> 00:45:43,605
WE FOUND IN THIS INSTANCE BY 

1160
00:45:43,605 --> 00:45:45,707
ADDING THE DOTTED LINES AND 

1161
00:45:45,707 --> 00:45:47,109
ADDING THE IDEAL, PEOPLE WOULD 

1162
00:45:47,109 --> 00:45:48,376
GET A BETTER SENSE OF WHERE 

1163
00:45:48,376 --> 00:45:54,649
THEY WERE.

1164
00:45:54,649 --> 00:46:01,456
WE ALSO WANTED TO HELP IN TERMS 

1165
00:46:01,456 --> 00:46:03,825
OF NOT ONLY RETURNING THE 

1166
00:46:03,825 --> 00:46:06,161
RESULTS BUT ONCE AGAIN FROM THE 

1167
00:46:06,161 --> 00:46:07,996
PERSPECTIVE OF HERMENEUTICAL 

1168
00:46:07,996 --> 00:46:09,364
INJUSTICE HELPING PEOPLE TO 

1169
00:46:09,364 --> 00:46:10,932
MAKE SENSE OF THE RESULTS.

1170
00:46:10,932 --> 00:46:13,135
AND WHY DOES IT MATTER IF YOUR 

1171
00:46:13,135 --> 00:46:14,536
BLOOD PRESSURE IS HIGH?

1172
00:46:14,536 --> 00:46:17,806
AND SO YOU SEE, WE DISPLAY A 

1173
00:46:17,806 --> 00:46:19,441
BLOOD PRESSURE AND ALSO INCLUDE 

1174
00:46:19,441 --> 00:46:20,809
THE RISKS OF HIGH BLOOD 

1175
00:46:20,809 --> 00:46:21,309
PRESSURE.

1176
00:46:21,309 --> 00:46:23,145
ONE OF THE THINGS THAT'S 

1177
00:46:23,145 --> 00:46:25,280
NOTABLE IN THIS, WE INCLUDE 

1178
00:46:25,280 --> 00:46:28,583
BOTH THE MORE COLLOQUIAL TERM 

1179
00:46:28,583 --> 00:46:29,851
AS WELL AS THE PROFESSIONAL 

1180
00:46:29,851 --> 00:46:30,719
TERM.

1181
00:46:30,719 --> 00:46:33,088
BECAUSE WE FIND IN MANY 

1182
00:46:33,088 --> 00:46:33,989
INSTANCES THEIR CLINICIANS MAY 

1183
00:46:33,989 --> 00:46:37,559
BE USING THE PROFESSIONAL TERM.

1184
00:46:37,559 --> 00:46:43,131
SO WHEN WE DID OUR 

1185
00:46:43,131 --> 00:46:46,101
PARTICIPATORY DESIGN, WE DID IT 

1186
00:46:46,101 --> 00:46:47,669
IN-PERSON.

1187
00:46:47,669 --> 00:46:49,538
COLUMBIA HAS A COMMUNITY 

1188
00:46:49,538 --> 00:46:51,640
STOREFRONT IN THE NEIGHBORHOOD.

1189
00:46:51,640 --> 00:46:54,142
WE DID THE SESSIONS THERE.

1190
00:46:54,142 --> 00:46:58,146
AND EVERYONE GOT A NICE STACK 

1191
00:46:58,146 --> 00:47:01,583
OF OUR DESIGNS AND THEY DID A 

1192
00:47:01,583 --> 00:47:02,984
VARIETY OF DESIGNS FOR EACH 

1193
00:47:02,984 --> 00:47:05,320
THING WE ARE TRYING TO MEASURE.

1194
00:47:05,320 --> 00:47:06,721
AND THEY COULD WRITE ON THEM, 

1195
00:47:06,721 --> 00:47:08,590
GIVE IT BACK TO US, DO WHATEVER 

1196
00:47:08,590 --> 00:47:09,758
THEY WANT WITH THEM.

1197
00:47:09,758 --> 00:47:12,294
I WOULD SAY THIS WAS THE ONE 

1198
00:47:12,294 --> 00:47:14,196
THAT WALKED OUT OF THE ROOM THE 

1199
00:47:14,196 --> 00:47:14,396
MOST.

1200
00:47:14,396 --> 00:47:16,498
ONE OF THE THINGS WE QUERIED 

1201
00:47:16,498 --> 00:47:19,067
PEOPLE ABOUT IN THE 

1202
00:47:19,067 --> 00:47:20,669
PARTICIPATORY DESIGN IS IF 

1203
00:47:20,669 --> 00:47:21,870
THEIR BLOOD PRESSURE WASN'T 

1204
00:47:21,870 --> 00:47:24,206
HIGH, WOULD THEY STILL WANT TO 

1205
00:47:24,206 --> 00:47:27,275
KNOW THE RISKS OF HIGH BLOOD 

1206
00:47:27,275 --> 00:47:27,542
PRESSURE.

1207
00:47:27,542 --> 00:47:29,110
BECAUSE HYPERTENSION WAS SO 

1208
00:47:29,110 --> 00:47:31,446
COMMON IN OUR COMMUNITY, THEY 

1209
00:47:31,446 --> 00:47:32,848
KNEW SOMEONE WITH HIGH BLOOD 

1210
00:47:32,848 --> 00:47:33,381
PRESSURE.

1211
00:47:33,381 --> 00:47:36,785
IF I HAD TO BET WHICH OF OUR 

1212
00:47:36,785 --> 00:47:41,690
INFOGRAPHICS ENDED UP UNDER A 

1213
00:47:41,690 --> 00:47:42,424
MAGNET ON REFRIGERATORS IT 

1214
00:47:42,424 --> 00:47:44,526
WOULD BE THIS ONE.

1215
00:47:44,526 --> 00:47:46,628
AND UNITED HEALTHCARE USES THIS 

1216
00:47:46,628 --> 00:47:48,363
IN THEIR CONSUMER DICTIONARY 

1217
00:47:48,363 --> 00:47:49,965
AND PEOPLE HAVE DONE FURTHER 

1218
00:47:49,965 --> 00:47:51,233
STUDIES WITH THIS.

1219
00:47:51,233 --> 00:47:56,605
OF COURSE THIS IS, TO BE ABLE 

1220
00:47:56,605 --> 00:47:58,473
TO DO THIS YOU WANT TO BE ABLE 

1221
00:47:58,473 --> 00:48:00,108
TO DO IT AT SCALE.

1222
00:48:00,108 --> 00:48:04,980
SO TO BE ABLE TO TAILOR THE 

1223
00:48:04,980 --> 00:48:07,616
INFOGRAPHICS, WE CREATED A 

1224
00:48:07,616 --> 00:48:12,520
SYSTEM WE CALLED ENTICE3 FOR 

1225
00:48:12,520 --> 00:48:15,123
SHORT.

1226
00:48:15,123 --> 00:48:16,992
ELECTRONIC TAILORED INFOR 

1227
00:48:16,992 --> 00:48:17,926
GRAPHICS FOR COMMUNITY 

1228
00:48:17,926 --> 00:48:18,727
ENGAGEMENT, EDUCATION AND 

1229
00:48:18,727 --> 00:48:19,828
EMPOWERMENT.

1230
00:48:19,828 --> 00:48:23,098
MORE OF A PROGRAM REVERSION AND 

1231
00:48:23,098 --> 00:48:24,833
ANOTHER MAYBE MORE BROADLY 

1232
00:48:24,833 --> 00:48:25,901
UNDERSTANDABLE VERSION.

1233
00:48:25,901 --> 00:48:28,703
BUT THE BASIC IDEA IS WHAT 

1234
00:48:28,703 --> 00:48:31,940
ENTICE DID, IT TOOK DATA AS 

1235
00:48:31,940 --> 00:48:33,909
INPUT, IN OUR INSTANCE, SURVEY 

1236
00:48:33,909 --> 00:48:36,845
DATA.

1237
00:48:36,845 --> 00:48:39,781
ATTACHED METADATA TO IT.

1238
00:48:39,781 --> 00:48:41,650
WOULD PROCESS BOTH POPULATION 

1239
00:48:41,650 --> 00:48:44,152
LEVEL DATA AND INDIVIDUAL DATA 

1240
00:48:44,152 --> 00:48:54,129
AND THEN MATCHED THAT AGAINST 

1241
00:48:54,129 --> 00:48:55,297
OUR GRAPHICAL REPOSITORY TO 

1242
00:48:55,297 --> 00:48:56,498
COME UP WITH THE INDIVIDUAL 

1243
00:48:56,498 --> 00:49:00,702
RESULT OF IT.

1244
00:49:00,702 --> 00:49:04,139
SO AFTER WE CONTINUED THE WORK 

1245
00:49:04,139 --> 00:49:07,709
OF WICER INTO SOME ADDITIONAL 

1246
00:49:07,709 --> 00:49:09,377
AREAS, WE HAVE DONE A FAIR 

1247
00:49:09,377 --> 00:49:14,215
AMOUNT OF WORK IN HISPANIC 

1248
00:49:14,215 --> 00:49:16,084
DEMENTIA CARE GIVING USING SOME 

1249
00:49:16,084 --> 00:49:20,555
OF THE PROCESSES THAT WE 

1250
00:49:20,555 --> 00:49:23,758
LEARNED THROUGH THE WICER 

1251
00:49:23,758 --> 00:49:24,993
PROJECT.

1252
00:49:24,993 --> 00:49:29,030
INITIALLY WHEN WE STARTED DOING 

1253
00:49:29,030 --> 00:49:31,533
THIS, WE REALLY DID IT FROM, I 

1254
00:49:31,533 --> 00:49:34,336
WOULD SAY VERY MUCH COMING AS 

1255
00:49:34,336 --> 00:49:35,737
MY PERSPECTIVE AS A NURSE.

1256
00:49:35,737 --> 00:49:37,872
WE WANTED TO DO SOMETHING, WE 

1257
00:49:37,872 --> 00:49:39,741
GOT OUR HANDS DIRTY.

1258
00:49:39,741 --> 00:49:42,310
WE DID THINGS PROBABLY A LITTLE 

1259
00:49:42,310 --> 00:49:44,412
LESS EFFICIENTLY THAN WE CAN DO 

1260
00:49:44,412 --> 00:49:45,347
THEM THESE DAYS.

1261
00:49:45,347 --> 00:49:46,548
BUT IT WAS VERY IMPORTANT TO 

1262
00:49:46,548 --> 00:49:47,582
GET THAT BACK.

1263
00:49:47,582 --> 00:49:51,219
SO WE LEARNED A LOT OF METHODS 

1264
00:49:51,219 --> 00:49:55,123
ABOUT HOW TO GO ABOUT THIS.

1265
00:49:55,123 --> 00:49:57,025
HOW TO AUTOMATE IT, HOW TO 

1266
00:49:57,025 --> 00:49:58,660
EVALUATE IT THROUGH THE YEARS.

1267
00:49:58,660 --> 00:50:04,165
AND THE POINT OF THAT ENDS UP 

1268
00:50:04,165 --> 00:50:06,067
BEING, AS WE WERE DOING THIS 

1269
00:50:06,067 --> 00:50:07,268
TYPE OF VISUALIZATION WORK, 

1270
00:50:07,268 --> 00:50:10,572
DEALING WITH A NUMBER OF 

1271
00:50:10,572 --> 00:50:12,007
DIFFERENT PRIORITY PROBLEMS IN 

1272
00:50:12,007 --> 00:50:13,208
OUR CLINIC, WE BEGAN THINKING 

1273
00:50:13,208 --> 00:50:15,744
ABOUT THE IDEA OF CREATING A 

1274
00:50:15,744 --> 00:50:16,745
TOOLBOX.

1275
00:50:16,745 --> 00:50:19,481
COULD WE CREATE A TOOLBOX THAT 

1276
00:50:19,481 --> 00:50:21,349
OTHER PEOPLE COULD USE, RATHER 

1277
00:50:21,349 --> 00:50:22,984
THAN JUST DOING THESE STUDIES 

1278
00:50:22,984 --> 00:50:25,820
OURSELVES.

1279
00:50:25,820 --> 00:50:28,656
AND THE OPPORTUNITY TO DO THAT 

1280
00:50:28,656 --> 00:50:34,829
REALLY CAME THROUGH THE NIH'S 

1281
00:50:34,829 --> 00:50:36,231
RADXUP PROGRAM, RAPID 

1282
00:50:36,231 --> 00:50:38,833
ACCELERATION OF DIAGNOSTICS FOR 

1283
00:50:38,833 --> 00:50:43,271
UNSERVED POPULATION.

1284
00:50:43,271 --> 00:50:44,239
THROUGH THIS RADXUP GRANT WE 

1285
00:50:44,239 --> 00:50:47,242
HAD THE OPPORTUNITY TO 

1286
00:50:47,242 --> 00:50:48,910
IMPLEMENT EPISTEMIC JUSTICE 

1287
00:50:48,910 --> 00:50:50,979
INFORMED APPROACHES TO ADDRESS 

1288
00:50:50,979 --> 00:50:54,582
DISPARITIES IN COVID-19 TESTING 

1289
00:50:54,582 --> 00:50:55,984
AND VACCINATION UPTAKE.

1290
00:50:55,984 --> 00:51:01,656
AND WE CALLED OUR PROJECT THE 

1291
00:51:01,656 --> 00:51:03,491
REDIVIS TOOLBOX.

1292
00:51:03,491 --> 00:51:06,061
AS WE IMAGINED IT, WE HAD 

1293
00:51:06,061 --> 00:51:07,695
LEARNED A LOT ABOUT 

1294
00:51:07,695 --> 00:51:08,563
VISUALIZATIONS IN THE LAST 

1295
00:51:08,563 --> 00:51:09,330
DECADE.

1296
00:51:09,330 --> 00:51:12,400
THE IDEA OF A TOOLBOX, IT WOULD 

1297
00:51:12,400 --> 00:51:14,202
TAKE INPUT, THE INFORMATION 

1298
00:51:14,202 --> 00:51:15,136
NEEDS OF THE COMMUNITY IS 

1299
00:51:15,136 --> 00:51:17,739
OUTPUT.

1300
00:51:17,739 --> 00:51:19,808
AS WICER TAILORED INFOGRAPHICS 

1301
00:51:19,808 --> 00:51:22,010
OR IT COULD HAPPEN AT 

1302
00:51:22,010 --> 00:51:23,511
INDIVIDUAL OR BATCH OUTPUT.

1303
00:51:23,511 --> 00:51:24,879
IT WOULD HAVE THE TAILORING 

1304
00:51:24,879 --> 00:51:25,447
CAPACITY.

1305
00:51:25,447 --> 00:51:30,752
WE WOULD HAVE THE DOCUMENTATION 

1306
00:51:30,752 --> 00:51:31,419
INCLUDING METHODOLOGICAL GUIDES 

1307
00:51:31,419 --> 00:51:31,886
ET CETERA.

1308
00:51:31,886 --> 00:51:33,555
TRYING TO GET A LOT OF WHAT WE 

1309
00:51:33,555 --> 00:51:35,290
LEARNED INTO THE TOOLBOX.

1310
00:51:35,290 --> 00:51:37,525
AND AS WE WROTE THE GRANT, WE 

1311
00:51:37,525 --> 00:51:38,693
REALLY THOUGHT ABOUT IT FROM 

1312
00:51:38,693 --> 00:51:41,463
THE PERSPECTIVE OF THE USERS 

1313
00:51:41,463 --> 00:51:43,364
COULD BE CLINICIANS, THEY COULD 

1314
00:51:43,364 --> 00:51:44,532
BE HEALTHCARE ORGANIZATIONS.

1315
00:51:44,532 --> 00:51:46,267
THEY COULD BE COMMUNITY-BASED 

1316
00:51:46,267 --> 00:51:46,634
ORGANIZATIONS.

1317
00:51:46,634 --> 00:51:50,805
OR THEY COULD BE RESEARCHERS.

1318
00:51:50,805 --> 00:51:53,675
BECAUSE THE NATURE OF THE COVID 

1319
00:51:53,675 --> 00:51:57,045
RESPONSE IN NEW YORK CITY WAS 

1320
00:51:57,045 --> 00:51:59,647
VERY, SO WAS COMMUNITY-BASED, 

1321
00:51:59,647 --> 00:52:01,883
WE DECIDED TO ACTUALLY FOCUS 

1322
00:52:01,883 --> 00:52:05,420
OUR ATTENTION ON THE USE CASE 

1323
00:52:05,420 --> 00:52:05,854
OF COMMUNITY-BASED 

1324
00:52:05,854 --> 00:52:06,821
ORGANIZATIONS.

1325
00:52:06,821 --> 00:52:08,923
AND REALLY THINKING ABOUT 

1326
00:52:08,923 --> 00:52:10,758
DEVELOPING A TOOLBOX THAT WE 

1327
00:52:10,758 --> 00:52:12,660
COULD PUT, GET INTO THE HANDS 

1328
00:52:12,660 --> 00:52:14,529
OF THE COMMUNITY HEALTH WORKERS 

1329
00:52:14,529 --> 00:52:19,300
THAT WERE SO IMPORTANT IN 

1330
00:52:19,300 --> 00:52:21,503
GETTING OUR COMMUNITIES TESTED 

1331
00:52:21,503 --> 00:52:23,671
AND VACCINATED DURING THE 

1332
00:52:23,671 --> 00:52:24,239
PANDEMIC.

1333
00:52:24,239 --> 00:52:26,341
THE IDEA BEHIND THIS PARTICULAR 

1334
00:52:26,341 --> 00:52:28,910
PROJECT, WE WANTED TO DECREASE 

1335
00:52:28,910 --> 00:52:33,815
THE DISPARITIES USING 

1336
00:52:33,815 --> 00:52:37,819
CULTURALLY CONGRUENT HEALTH 

1337
00:52:37,819 --> 00:52:39,921
LITERATE INFOGRAPHICS TO MEET 

1338
00:52:39,921 --> 00:52:41,055
INFORMATION, AND MOTIVATE 

1339
00:52:41,055 --> 00:52:41,956
APPROPRIATE BEHAVIORS.

1340
00:52:41,956 --> 00:52:45,393
THIS WAS A VERY 

1341
00:52:45,393 --> 00:52:46,161
INTERDISCIPLINARY AND 

1342
00:52:46,161 --> 00:52:47,962
COLLABORATIVE PROJECT.

1343
00:52:47,962 --> 00:52:53,434
WE HAD MULTIPLE  SCHOOLS AT 

1344
00:52:53,434 --> 00:52:54,302
COLUMBIA INVOLVED.

1345
00:52:54,302 --> 00:52:59,140
IN ADDITION, IN OUR FIRST 

1346
00:52:59,140 --> 00:53:00,642
RADXUP GRANT WAS IN HARLEM AND 

1347
00:53:00,642 --> 00:53:02,210
WE WORKED WITH THE ASSOCIATION 

1348
00:53:02,210 --> 00:53:04,345
TO BENEFIT CHILDREN AND INITIAL 

1349
00:53:04,345 --> 00:53:06,681
FUNDING WAS REALLY FOCUSED 

1350
00:53:06,681 --> 00:53:07,348
AROUND PRIMARILY FOCUSED ON 

1351
00:53:07,348 --> 00:53:08,082
TESTING.

1352
00:53:08,082 --> 00:53:11,819
BUT WE HAD THE OPPORTUNITY TO 

1353
00:53:11,819 --> 00:53:13,254
BEGIN TO ADDRESS VACCINATION 

1354
00:53:13,254 --> 00:53:19,060
THERE AS WELL.

1355
00:53:19,060 --> 00:53:20,495
WE HAD AN ADDITIONAL 

1356
00:53:20,495 --> 00:53:21,829
OPPORTUNITY TO GET SOME MORE 

1357
00:53:21,829 --> 00:53:23,031
FUNDING.

1358
00:53:23,031 --> 00:53:24,699
AND WE DECIDED TO, FOR THE 

1359
00:53:24,699 --> 00:53:28,403
FIRST TIME, TO INCORPORATE SOME 

1360
00:53:28,403 --> 00:53:29,904
OTHER HEALTH DISPARATE 

1361
00:53:29,904 --> 00:53:32,473
POPULATIONS IN NEW YORK CITY.

1362
00:53:32,473 --> 00:53:38,913
AND THAT WAS THINKING ABOUT 

1363
00:53:38,913 --> 00:53:40,315
BANGLADESHI IMMIGRANTS AND 

1364
00:53:40,315 --> 00:53:41,849
CHINESE IMMIGRANTS SO WE ENDED 

1365
00:53:41,849 --> 00:53:44,285
UP WORKING WITH NEW YORK 

1366
00:53:44,285 --> 00:53:45,420
UNIVERSITY, POPULATION HEALTH 

1367
00:53:45,420 --> 00:53:47,288
AND MEDICINE AND SPECIFICALLY 

1368
00:53:47,288 --> 00:53:49,657
WITH PROJECT NEW YORKER WHICH 

1369
00:53:49,657 --> 00:53:53,428
FOCUSES ON THE BANGLADESHI 

1370
00:53:53,428 --> 00:53:54,896
POPULATION AND CHINESE-AMERICAN 

1371
00:53:54,896 --> 00:53:57,265
PLANNING COUNCIL IN THE WORK.

1372
00:53:57,265 --> 00:54:03,037
SO IN THIS  --  I CAN SAY THAT 

1373
00:54:03,037 --> 00:54:05,707
RADXUP WAS VERY SERIOUS ABOUT 

1374
00:54:05,707 --> 00:54:07,008
COMMUNITY ENGAGEMENT.

1375
00:54:07,008 --> 00:54:08,876
AND SO, IT WAS A GREAT MATCH 

1376
00:54:08,876 --> 00:54:11,212
FOR US, BECAUSE WE ARE VERY 

1377
00:54:11,212 --> 00:54:11,946
SERIOUS ABOUT COMMUNITY 

1378
00:54:11,946 --> 00:54:13,748
ENGAGEMENT.

1379
00:54:13,748 --> 00:54:17,485
SO OUR PROJECTS, AS OTHER 

1380
00:54:17,485 --> 00:54:18,920
RADXUP PROJECTS REALLY STARTED 

1381
00:54:18,920 --> 00:54:21,756
OUT WITH REALLY UNDERSTANDING 

1382
00:54:21,756 --> 00:54:23,858
COMMUNITY NEEDS FOR US AND WE 

1383
00:54:23,858 --> 00:54:25,960
MOVED TO PARTICIPATORY DESIGN 

1384
00:54:25,960 --> 00:54:32,500
AND THEN DEVELOPING A TOOLBOX.

1385
00:54:32,500 --> 00:54:33,835
RADX-UP HAD COMMON DATA 

1386
00:54:33,835 --> 00:54:34,335
ELEMENTS.

1387
00:54:34,335 --> 00:54:36,938
I WILL SHOW YOU WHAT SOME OF 

1388
00:54:36,938 --> 00:54:38,806
THE COMMON DATA ELEMENTS WERE.

1389
00:54:38,806 --> 00:54:43,411
IN ADDITION TO RADXUP COMMON 

1390
00:54:43,411 --> 00:54:45,713
DATA ELEMENTS WE COLLECTED 

1391
00:54:45,713 --> 00:54:46,648
SUBJECTIVE HEALTH LITERACY AND 

1392
00:54:46,648 --> 00:54:47,815
NUMERATOR RA SY.

1393
00:54:47,815 --> 00:54:50,151
THOSE WERE SPECIFIC TO OUR 

1394
00:54:50,151 --> 00:54:51,152
PROJECT.

1395
00:54:51,152 --> 00:54:52,086
WE THOUGHT PARTICULARLY FOR 

1396
00:54:52,086 --> 00:54:54,188
WHAT WE WERE TRYING TO DO THESE 

1397
00:54:54,188 --> 00:54:55,323
WERE VERY IMPORTANT VARIABLES 

1398
00:54:55,323 --> 00:54:56,057
FOR US.

1399
00:54:56,057 --> 00:55:06,534
AND THEN WE HAD A SUBSET OF 

1400
00:55:08,303 --> 00:55:10,338
PEOPLE FOCUSED ON TRYING TO GET 

1401
00:55:10,338 --> 00:55:12,974
COMMUNITY EXPERIENCES AND 

1402
00:55:12,974 --> 00:55:15,376
BELIEFS ABOUT COVID-19 TESTING 

1403
00:55:15,376 --> 00:55:16,678
AND VACCINE AND TRUSTED SOURCES 

1404
00:55:16,678 --> 00:55:18,813
OF INFORMATION.

1405
00:55:18,813 --> 00:55:23,017
SO IN OUR REDIVIS PROJECT WE 

1406
00:55:23,017 --> 00:55:25,586
HAD ABOUT 1,000 PARTICIPANTS.

1407
00:55:25,586 --> 00:55:30,391
WE STARTED IN WASHINGTON 

1408
00:55:30,391 --> 00:55:31,526
HEIGHTS INNWOOD, THEY 

1409
00:55:31,526 --> 00:55:32,927
PARTICIPATED IN BOTH 

1410
00:55:32,927 --> 00:55:34,562
POPULATIONS PARTICIPATED IN 

1411
00:55:34,562 --> 00:55:37,131
BOTH TESTING AND INVESTIGATION 

1412
00:55:37,131 --> 00:55:37,432
INITIATIVES.

1413
00:55:37,432 --> 00:55:38,900
SO THEY ARE PREDOMINANT IN OUR 

1414
00:55:38,900 --> 00:55:41,336
SAMPLE.

1415
00:55:41,336 --> 00:55:43,204
64% LATINO, 25% BLACK.

1416
00:55:43,204 --> 00:55:46,641
AND THEN 7% BANGLA AND CHINESE 

1417
00:55:46,641 --> 00:55:48,242
THROUGH OUR TARGETED OUTREACH.

1418
00:55:48,242 --> 00:55:54,349
THE MAJORITY WERE WOMEN.

1419
00:55:54,349 --> 00:55:55,950
THESE PROJECTS OCCURRED OVER 

1420
00:55:55,950 --> 00:55:57,352
ABOUT THREE YEARS AND DURING 

1421
00:55:57,352 --> 00:55:59,954
THAT PERIOD OF TIME, AT LEAST 

1422
00:55:59,954 --> 00:56:01,255
80% RECEIVED AT LEAST ONE 

1423
00:56:01,255 --> 00:56:02,023
VACCINATION.

1424
00:56:02,023 --> 00:56:04,625
SO OUR SAMPLE THAT WAS BIASED 

1425
00:56:04,625 --> 00:56:05,760
WAS BIASED IN THAT PARTICULAR 

1426
00:56:05,760 --> 00:56:06,928
WAY.

1427
00:56:06,928 --> 00:56:12,333
ONE OF THE THINGS THAT WAS 

1428
00:56:12,333 --> 00:56:15,136
REALLY NOTABLE WAS ALTHOUGH 

1429
00:56:15,136 --> 00:56:16,537
PEOPLE SUBJECTED HEALTH 

1430
00:56:16,537 --> 00:56:18,639
LITERACY WOULD INDICATE MOST 

1431
00:56:18,639 --> 00:56:20,508
PEOPLE CONSIDERED THEMSELFS TO 

1432
00:56:20,508 --> 00:56:25,179
BE HEALTH LITERATE 34% ANSWERED 

1433
00:56:25,179 --> 00:56:26,814
THE NUMERACY QUESTION 

1434
00:56:26,814 --> 00:56:28,416
INCORRECTLY, WHICH IS NUMBERS 

1435
00:56:28,416 --> 00:56:30,885
REPRESENTS THE BIGGEST RISK OF 

1436
00:56:30,885 --> 00:56:31,886
A DISEASE.

1437
00:56:31,886 --> 00:56:33,621
IF YOU COULD IMAGINE THIS WAS 

1438
00:56:33,621 --> 00:56:34,789
REALLY IMPORTANT TO KNOW 

1439
00:56:34,789 --> 00:56:36,724
BECAUSE WHEN YOU THINK ABOUT 

1440
00:56:36,724 --> 00:56:42,130
ALL THE NUMBERS THROWN AROUND 

1441
00:56:42,130 --> 00:56:44,265
ABOUT COVID, TERMS OF TESTING, 

1442
00:56:44,265 --> 00:56:45,433
THINKING ABOUT ACCURACY OF 

1443
00:56:45,433 --> 00:56:48,536
TEST, IN TERMS OF THE VACCINE, 

1444
00:56:48,536 --> 00:56:51,305
RISKS OF GETTING A SIDE EFFECT 

1445
00:56:51,305 --> 00:56:54,809
FROM THE VACCINE, VERSUS RISKS 

1446
00:56:54,809 --> 00:56:56,544
OF COMPLICATIONS FROM COVID.

1447
00:56:56,544 --> 00:56:59,380
SO HAVING A THIRD OF OUR SAMPLE 

1448
00:56:59,380 --> 00:57:03,885
AND WHEN I WAS FIRST SHARING 

1449
00:57:03,885 --> 00:57:05,787
THIS DATA, WE DIDN'T YET HAVE 

1450
00:57:05,787 --> 00:57:09,457
THE BANGLA AND THE CHINESE 

1451
00:57:09,457 --> 00:57:10,825
INFORMATION INTEGRATED BUT THE 

1452
00:57:10,825 --> 00:57:14,095
ACCURACY LEVEL IS THE SAME IN 

1453
00:57:14,095 --> 00:57:14,762
THOSE POPULATIONS, POPULATIONS 

1454
00:57:14,762 --> 00:57:17,031
AS WELL.

1455
00:57:17,031 --> 00:57:20,401
WE LOOKED AT IT FROM THE 

1456
00:57:20,401 --> 00:57:23,237
PERSPECTIVE OF MOTIVATORS AND 

1457
00:57:23,237 --> 00:57:25,072
HESITANCY CONCERNS, VERY MUCH 

1458
00:57:25,072 --> 00:57:29,043
FOCUSED ON THE FAMILY THIS IS 

1459
00:57:29,043 --> 00:57:33,014
NOT DIFFERENCE ACROSS THE 

1460
00:57:33,014 --> 00:57:34,449
DEMOGRAPHICS OF POPULATIONS, 

1461
00:57:34,449 --> 00:57:35,383
KEEPING THEMSELVES SAFE, 

1462
00:57:35,383 --> 00:57:36,584
KEEPING THE COMMUNITY SAFE.

1463
00:57:36,584 --> 00:57:38,186
SO THESE WERE THINGS LIKE WE 

1464
00:57:38,186 --> 00:57:40,822
COULD THINK OF IN TERMS OF 

1465
00:57:40,822 --> 00:57:42,156
CRAFTING MESSAGES.

1466
00:57:42,156 --> 00:57:45,226
AND THEN KEY HESITANCY 

1467
00:57:45,226 --> 00:57:46,360
CONCERNS, SIDE EFFECTS, OTHER.

1468
00:57:46,360 --> 00:57:48,196
DON'T KNOW HOW THE VACCINE 

1469
00:57:48,196 --> 00:57:48,930
WORKS.

1470
00:57:48,930 --> 00:57:54,001
SO I'M SURE YOU HEARD MANY OF 

1471
00:57:54,001 --> 00:57:55,336
THESE SAME CONCERNS.

1472
00:57:55,336 --> 00:57:57,238
IT WAS IMPORTANT, THE 

1473
00:57:57,238 --> 00:57:58,606
QUALITATIVE WORK WAS 

1474
00:57:58,606 --> 00:57:59,774
PARTICULARLY IMPORTANT WHEN WE 

1475
00:57:59,774 --> 00:58:03,344
THINK OF HAVING 16% WHO SAID IT 

1476
00:58:03,344 --> 00:58:04,612
WAS SOMETHING THAT WAS OTHER.

1477
00:58:04,612 --> 00:58:07,682
I WILL GET INTO THAT IN A 

1478
00:58:07,682 --> 00:58:08,115
MOMENT.

1479
00:58:08,115 --> 00:58:11,419
WHEN WE LOOKED AT TRUSTED 

1480
00:58:11,419 --> 00:58:13,154
SOURCES OF INFORMATION, THE 

1481
00:58:13,154 --> 00:58:14,322
HEALTHCARE PROVIDER WAS THE 

1482
00:58:14,322 --> 00:58:15,656
MOST TRUSTED SOURCE.

1483
00:58:15,656 --> 00:58:17,258
THIS WAS FOLLOWED BY FRIENDS 

1484
00:58:17,258 --> 00:58:23,464
AND FAMILY, WHICH WAS ABOVE 

1485
00:58:23,464 --> 00:58:25,099
GOVERNMENT NEWS, CORONA VIRUS 

1486
00:58:25,099 --> 00:58:26,400
TASK ET CETERA.

1487
00:58:26,400 --> 00:58:28,135
I WAS PLEASED TO SEE SOCIAL 

1488
00:58:28,135 --> 00:58:30,104
MEDIA WAS LAST IN THIS.

1489
00:58:30,104 --> 00:58:34,175
AS I MENTIONED, WE LEARNED A 

1490
00:58:34,175 --> 00:58:36,511
LOT FROM THOSE SURVEY DATA FROM 

1491
00:58:36,511 --> 00:58:37,445
ALMOST 1,000 PEOPLE.

1492
00:58:37,445 --> 00:58:41,916
BUT WE ALSO LEARNED SOME REALLY 

1493
00:58:41,916 --> 00:58:43,551
IMPORTANT THINGS FROM OUR 

1494
00:58:43,551 --> 00:58:44,252
INTERVIEWS WITH COMMUNITY 

1495
00:58:44,252 --> 00:58:45,386
MEMBERS.

1496
00:58:45,386 --> 00:58:47,955
AND IT ACTUALLY WAS EASIER TO 

1497
00:58:47,955 --> 00:58:50,057
RECRUIT FOR FOCUS GROUPS AND 

1498
00:58:50,057 --> 00:58:51,158
INTERVENERS THAN IT WAS FOR THE 

1499
00:58:51,158 --> 00:58:52,159
SURVEYS.

1500
00:58:52,159 --> 00:58:54,028
I THINK PEOPLE FELT SO 

1501
00:58:54,028 --> 00:58:54,862
ISOLATED, THEY WANTED TO TALK 

1502
00:58:54,862 --> 00:58:56,130
ABOUT THIS.

1503
00:58:56,130 --> 00:58:57,999
AND WHAT WERE THEIR THOUGHTS 

1504
00:58:57,999 --> 00:58:59,166
AND WHAT THEY WERE WORRIED 

1505
00:58:59,166 --> 00:59:01,068
ABOUT.

1506
00:59:01,068 --> 00:59:03,538
SO IT DID SHOW THE 

1507
00:59:03,538 --> 00:59:05,339
MISUNDERSTANDING ABOUT HOW THE 

1508
00:59:05,339 --> 00:59:06,507
VACCINE WORKS, PARTICULARLY THE 

1509
00:59:06,507 --> 00:59:08,109
SPEED OF DEVELOPMENT.

1510
00:59:08,109 --> 00:59:10,478
SOMETHING THAT DIDN'T COME UP 

1511
00:59:10,478 --> 00:59:14,749
IN THE SURVEY THAT WAS IN THE 

1512
00:59:14,749 --> 00:59:17,752
OTHER WAS CERTAINLY WORRY ABOUT 

1513
00:59:17,752 --> 00:59:20,621
LONG-TERM EFFECTS FOR SELF AND 

1514
00:59:20,621 --> 00:59:22,189
OFFSPRING.

1515
00:59:22,189 --> 00:59:26,360
SO FOR EXAMPLE, LIKE THIS WAS, 

1516
00:59:26,360 --> 00:59:28,462
WHILE WE EXPECTED THERE MIGHT 

1517
00:59:28,462 --> 00:59:31,332
BE DIFFERENT CULTURAL CONCERNS, 

1518
00:59:31,332 --> 00:59:34,335
IN OUR STUDY AGE SEEMED TO BE 

1519
00:59:34,335 --> 00:59:36,203
THE PRIMARY DRIVER OF THIS 

1520
00:59:36,203 --> 00:59:37,605
PARTICULAR CONCERN WITH PEOPLE 

1521
00:59:37,605 --> 00:59:40,174
WHO WERE MUCH YOUNGER BEING 

1522
00:59:40,174 --> 00:59:41,642
MORE CONCERNED ABOUT LONG-TERM 

1523
00:59:41,642 --> 00:59:42,543
EFFECTS.

1524
00:59:42,543 --> 00:59:46,247
AND CERTAINLY FOR PEOPLE IN THE 

1525
00:59:46,247 --> 00:59:47,882
CHILD-BEARING YEARS, PEOPLE WHO 

1526
00:59:47,882 --> 00:59:49,650
WERE PREGNANT, PEOPLE WHO WERE 

1527
00:59:49,650 --> 00:59:51,419
BREAST FEEDING.

1528
00:59:51,419 --> 00:59:53,521
AMONG THE BUDDHISTS THERE WAS 

1529
00:59:53,521 --> 00:59:56,390
SOME CONCERN THE VACCINE 

1530
00:59:56,390 --> 00:59:58,125
CONFLICTED WITH RELIGIOUS 

1531
00:59:58,125 --> 01:00:00,661
BELIEF OF ONLY HAVING HEALTHY 

1532
01:00:00,661 --> 01:00:02,296
THINGS IN YOUR BODY.

1533
01:00:02,296 --> 01:00:05,466
AND MANY PEOPLE STRONGLY FELT 

1534
01:00:05,466 --> 01:00:10,471
THAT THERE WAS SARS-COV-2 IN 

1535
01:00:10,471 --> 01:00:12,340
THE VACCINATION ITSELF.

1536
01:00:12,340 --> 01:00:14,208
THERE WAS ALSO A COUPLE OF 

1537
01:00:14,208 --> 01:00:17,044
THINGS THAT CAME OUT ONLY IN 

1538
01:00:17,044 --> 01:00:17,979
OUR HARLEM COMMUNITY.

1539
01:00:17,979 --> 01:00:20,348
AND THAT WAS THE NOTION OF 

1540
01:00:20,348 --> 01:00:21,449
WAIT-AND-SEE.

1541
01:00:21,449 --> 01:00:23,351
WE HAD ALL THIS DATA COMING OUT 

1542
01:00:23,351 --> 01:00:25,553
BUT IT WAS ON AVERAGE.

1543
01:00:25,553 --> 01:00:27,755
PEOPLE KIND OF LIKE, THAT IS ON 

1544
01:00:27,755 --> 01:00:29,223
AVERAGE, BUT I WANT TO SEE 

1545
01:00:29,223 --> 01:00:31,292
MYSELF MORE IN THE DATA.

1546
01:00:31,292 --> 01:00:34,762
I DON'T CARE THAT IF ON AVERAGE 

1547
01:00:34,762 --> 01:00:36,163
THE SIDE EFFECT IS THIS.

1548
01:00:36,163 --> 01:00:38,032
WHAT IS THE SLIDE FOR PEOPLE 

1549
01:00:38,032 --> 01:00:45,539
MORE IN MY DEMOGRAPHIC?

1550
01:00:45,539 --> 01:00:47,875
PRIORITIZATION OF PEOPLE OF 

1551
01:00:47,875 --> 01:00:49,910
COLOR SEE FEAR OF RACIST 

1552
01:00:49,910 --> 01:00:50,711
INTENTIONS.

1553
01:00:50,711 --> 01:00:53,080
THIS IS FROM ONE OF THE 

1554
01:00:53,080 --> 01:00:55,516
INTERVIEWS, ARE WE THE GUINEA 

1555
01:00:55,516 --> 01:00:57,485
PIGS?

1556
01:00:57,485 --> 01:00:58,252
WHITE PEOPLE USUALLY GET 

1557
01:00:58,252 --> 01:00:59,120
EVERYTHING FIRST.

1558
01:00:59,120 --> 01:01:00,988
IN THE LAST COUPLE MONTHS I 

1559
01:01:00,988 --> 01:01:03,357
HAVE BEEN RETURNING THIS DATA 

1560
01:01:03,357 --> 01:01:06,427
IN THE HARLEM COMMUNITY.

1561
01:01:06,427 --> 01:01:09,563
THIS REALLY HAS BEEN REINFORCED 

1562
01:01:09,563 --> 01:01:16,871
AND ONE OF THE REASONS THAT 

1563
01:01:16,871 --> 01:01:18,472
LEARNED MORE IN RETURNING THIS 

1564
01:01:18,472 --> 01:01:20,341
DATA IS SOME INDIVIDUALS 

1565
01:01:20,341 --> 01:01:21,475
PARTICULARLY IN PUBLIC HOUSING 

1566
01:01:21,475 --> 01:01:23,811
FELT LIKE THEY HAD GOTTEN 

1567
01:01:23,811 --> 01:01:26,380
LIMITED RESOURCES FOR 

1568
01:01:26,380 --> 01:01:28,449
PREVENTION SO THEN WHEN THE 

1569
01:01:28,449 --> 01:01:30,551
VACCINE WAS BROADLY AVAILABLE, 

1570
01:01:30,551 --> 01:01:33,888
THEY JUST WEREN'T SO SURE.

1571
01:01:33,888 --> 01:01:38,793
SO THE FEARS OF TUSKEGEE AND 

1572
01:01:38,793 --> 01:01:40,227
THOSE THINGS ARE STILL ALIVE 

1573
01:01:40,227 --> 01:01:41,595
AND WELL AND THINKING ABOUT 

1574
01:01:41,595 --> 01:01:43,297
THIS FROM THE PERSPECTIVE OF 

1575
01:01:43,297 --> 01:01:46,233
OUR COMMUNITY.

1576
01:01:46,233 --> 01:01:48,302
SO WHAT DID WE REALLY LEARN 

1577
01:01:48,302 --> 01:01:50,404
ABOUT THIS THAT REALLY INFORMED 

1578
01:01:50,404 --> 01:01:53,974
THE DESIGN OF THE INFOGRAPHICS, 

1579
01:01:53,974 --> 01:01:55,843
THAT IT WAS IMPORTANT THAT WE 

1580
01:01:55,843 --> 01:01:57,344
NEED TO ADDRESS DIFFERENT TYPES 

1581
01:01:57,344 --> 01:01:58,646
OF TESTS.

1582
01:01:58,646 --> 01:02:00,514
THERE WERE CONCERNS AROUND THAT.

1583
01:02:00,514 --> 01:02:03,784
CLEARLY MAKING UNDERSTANDING 

1584
01:02:03,784 --> 01:02:04,518
VACCINE MECHANISMS AND 

1585
01:02:04,518 --> 01:02:05,419
PLATFORMS.

1586
01:02:05,419 --> 01:02:09,123
REALLY HAVE A WAY TO ADDRESS 

1587
01:02:09,123 --> 01:02:10,357
KEY HESITANCY CONCERNS OF 

1588
01:02:10,357 --> 01:02:11,926
SPECIFIC POPULATIONS.

1589
01:02:11,926 --> 01:02:13,794
FOR INSTANCE, SOMEONE OF 

1590
01:02:13,794 --> 01:02:15,663
CHILDBEARING AGE HAD DIFFERENT 

1591
01:02:15,663 --> 01:02:16,497
CONCERNS THAN SOMEONE WHO WAS 

1592
01:02:16,497 --> 01:02:17,565
OLDER.

1593
01:02:17,565 --> 01:02:18,733
AND OTHER THINGS THAT WOULD BE 

1594
01:02:18,733 --> 01:02:20,401
VERY IMPORTANT TO ALLOW 

1595
01:02:20,401 --> 01:02:22,036
BRANDING FROM A TRUSTED SOURCE 

1596
01:02:22,036 --> 01:02:23,137
IN THE COMMUNITY.

1597
01:02:23,137 --> 01:02:26,073
WE WANTED TO SUPPORT CULTURAL 

1598
01:02:26,073 --> 01:02:29,710
CONGRUENCE, AND WE REALLY NEED 

1599
01:02:29,710 --> 01:02:35,082
TO HAVE SOME GOOD OPTIONS FOR 

1600
01:02:35,082 --> 01:02:36,050
COMMUNICATING PROPORTIONS 

1601
01:02:36,050 --> 01:02:38,986
BECAUSE SO MANY OF THE, ONE 

1602
01:02:38,986 --> 01:02:41,489
THIRD OF THAT POPULATION GOT 

1603
01:02:41,489 --> 01:02:42,656
THE NUMERACY QUESTION WRONG.

1604
01:02:42,656 --> 01:02:46,360
WE WENT INTO OUR PARTICIPATORY 

1605
01:02:46,360 --> 01:02:47,328
DESIGN PHASE.

1606
01:02:47,328 --> 01:02:48,596
WE USUALLY DO THAT IN TWO 

1607
01:02:48,596 --> 01:02:49,864
PHASES.

1608
01:02:49,864 --> 01:02:54,902
WE DO A BROAD SURVEY JUST 

1609
01:02:54,902 --> 01:02:56,937
TESTING OUT SOME INFOGRAPHIC 

1610
01:02:56,937 --> 01:02:57,671
COMPONENTS.

1611
01:02:57,671 --> 01:03:01,675
WE ALL CAN REMEMBER THOSE DEEP 

1612
01:03:01,675 --> 01:03:11,852
IF  PHARYNGEAL SWABS.

1613
01:03:11,852 --> 01:03:12,586
TALKING ABOUT OUR PARTICULAR 

1614
01:03:12,586 --> 01:03:13,487
TEST.

1615
01:03:13,487 --> 01:03:16,991
THEN WE FOLLOWED WITH THE 

1616
01:03:16,991 --> 01:03:18,526
PARTICIPATORY DESIGN ITSELF.

1617
01:03:18,526 --> 01:03:19,994
THAT'S REALLY PULLING SOME OF 

1618
01:03:19,994 --> 01:03:21,362
THE DIFFERENT INFOGRAPHICS, 

1619
01:03:21,362 --> 01:03:23,497
SOME OF THE DIFFERENT ICONS AND 

1620
01:03:23,497 --> 01:03:28,869
DESIGN IDEAS INTO A MORE 

1621
01:03:28,869 --> 01:03:30,971
COHERENT STORY WE WORKSHOPED 

1622
01:03:30,971 --> 01:03:32,173
TWO DIFFERENT APPROACHES GOING 

1623
01:03:32,173 --> 01:03:37,578
WITH A DIFFERENT TEXTBOOK 

1624
01:03:37,578 --> 01:03:38,913
APPROACH OR DIFFERENT 

1625
01:03:38,913 --> 01:03:40,381
PERSONIFIED APPROACH.

1626
01:03:40,381 --> 01:03:42,249
I WAS PERSONALLY CONCERNED IF 

1627
01:03:42,249 --> 01:03:44,351
WE WENT WITH PERSONIFIED THAT 

1628
01:03:44,351 --> 01:03:45,486
PEOPLE MIGHT NOT TAKE IT 

1629
01:03:45,486 --> 01:03:46,253
SERIOUSLY.

1630
01:03:46,253 --> 01:03:49,323
BUT AS WE WENT THROUGH THE 

1631
01:03:49,323 --> 01:03:51,192
WORKSHOPING, IT WAS VERY CLEAR 

1632
01:03:51,192 --> 01:03:53,327
THAT THE PERSONIFIED APPROACH 

1633
01:03:53,327 --> 01:03:56,997
WAS WHAT PEOPLE FELT WOULD BE, 

1634
01:03:56,997 --> 01:03:59,533
WOULD GET THE ATTENTION OF THE 

1635
01:03:59,533 --> 01:03:59,800
COMMUNITY.

1636
01:03:59,800 --> 01:04:04,872
AND TO BE ABLE TO ELABORATION 

1637
01:04:04,872 --> 01:04:05,573
LIKELIHOOD THEORY SAYS THE 

1638
01:04:05,573 --> 01:04:07,474
FIRST THING YOU HAVE TO DO IS 

1639
01:04:07,474 --> 01:04:09,109
GET SOMEBODY'S ATTENTION.

1640
01:04:09,109 --> 01:04:14,748
THEY CAN'T ATTEND TO IT IF IF 

1641
01:04:14,748 --> 01:04:16,650
THEY CAN'T DO ANY ACTION AND 

1642
01:04:16,650 --> 01:04:19,453
YOU CAN'T GET THE ATTENTION 

1643
01:04:19,453 --> 01:04:19,653
FIRST.

1644
01:04:19,653 --> 01:04:22,723
WE ENDED UP GOING THROUGH THE 

1645
01:04:22,723 --> 01:04:23,891
PARTICIPATORY DESIGN PROCESS 

1646
01:04:23,891 --> 01:04:25,426
WITH THE VARIOUS COMMUNITIES.

1647
01:04:25,426 --> 01:04:31,398
AND THIS IS OUR COVID-19 

1648
01:04:31,398 --> 01:04:33,467
VACCINE INFOGRAPHIC.

1649
01:04:33,467 --> 01:04:38,105
SO IT USES WHAT CONCEPTUAL 

1650
01:04:38,105 --> 01:04:38,606
METAPHOR TEACHES, IT'S 

1651
01:04:38,606 --> 01:04:39,907
IMPORTANT TO HAVE A METAPHOR 

1652
01:04:39,907 --> 01:04:42,676
WHEN YOU ARE DOING 

1653
01:04:42,676 --> 01:04:44,044
COMMUNICATION SO THE METAPHOR 

1654
01:04:44,044 --> 01:04:45,479
FOR THIS WAS REALLY WAR.

1655
01:04:45,479 --> 01:04:49,583
SO YOU SEE THAT THROUGH SOME OF 

1656
01:04:49,583 --> 01:04:50,517
THE DIFFERENT CHARACTERS.

1657
01:04:50,517 --> 01:04:54,221
YOU SEE THERE'S THE GOOD GUYS 

1658
01:04:54,221 --> 01:04:57,958
HAVE LIGHT SABRES, THE 

1659
01:04:57,958 --> 01:04:59,960
ANTIBODIES HAVE LIGHT SABRES TO 

1660
01:04:59,960 --> 01:05:01,862
HELP FIGHT THE VIRUS AND THAT 

1661
01:05:01,862 --> 01:05:03,664
KIND OF THING.

1662
01:05:03,664 --> 01:05:05,432
THIS IS THE STANDARD SET OF 

1663
01:05:05,432 --> 01:05:06,867
INFORMATION AND THIS BUILDS ON 

1664
01:05:06,867 --> 01:05:08,936
THE NEEDS WE SAW FROM THE 

1665
01:05:08,936 --> 01:05:09,904
COMMUNITY, LACK OF 

1666
01:05:09,904 --> 01:05:11,071
UNDERSTANDING ABOUT HOW THE 

1667
01:05:11,071 --> 01:05:13,107
VIRUS MAKES YOU SICK AND HOW 

1668
01:05:13,107 --> 01:05:14,275
THE VACCINE WORKS.

1669
01:05:14,275 --> 01:05:17,077
THEN AS FAR AS THE TAILORING 

1670
01:05:17,077 --> 01:05:20,047
ASPECT, WE TOOK THE THINGS THAT 

1671
01:05:20,047 --> 01:05:23,951
WE HEARD AND TURNED THEM INTO 

1672
01:05:23,951 --> 01:05:27,154
DIFFERENT QUESTIONS WITH 

1673
01:05:27,154 --> 01:05:28,622
DIFFERENT ICONS THAT GO ALONG 

1674
01:05:28,622 --> 01:05:30,157
WITH THEM.

1675
01:05:30,157 --> 01:05:33,794
SO IN ADDITION TO HAVING THE 

1676
01:05:33,794 --> 01:05:35,195
STANDARD INFORMATION, A 

1677
01:05:35,195 --> 01:05:36,630
COMMUNITY HEALTH WORKER CAN 

1678
01:05:36,630 --> 01:05:38,933
SELECT THE THINGS THAT ARE MOST 

1679
01:05:38,933 --> 01:05:40,334
RELEVANT TO THE PERSON THAT 

1680
01:05:40,334 --> 01:05:43,003
THEY ARE WORKING WITH.

1681
01:05:43,003 --> 01:05:45,339
TO HAVE THAT CREATE INDIVIDUAL 

1682
01:05:45,339 --> 01:05:50,210
GRAPHIC FOR THEM.

1683
01:05:50,210 --> 01:05:52,212
WHERE WE ARE IN THIS, WE NEEDED 

1684
01:05:52,212 --> 01:05:53,948
TO TAKE EVERYTHING WE LEARNED 

1685
01:05:53,948 --> 01:05:56,750
AND TURN IT INTO A TOOLBOX THAT 

1686
01:05:56,750 --> 01:05:57,651
OTHERS COULD USE.

1687
01:05:57,651 --> 01:05:59,687
YOU WILL NOTICE A NAME CHANGE 

1688
01:05:59,687 --> 01:06:00,254
HERE.

1689
01:06:00,254 --> 01:06:06,126
IT TURNED OUT THAT THERE WAS 

1690
01:06:06,126 --> 01:06:15,569
SOME SOFTWARE ALREADY CALLED 

1691
01:06:15,569 --> 01:06:17,037
TAILOR-VIS TOOLBOX.

1692
01:06:17,037 --> 01:06:19,840
WE DIDN'T WANT TO GET ANY 

1693
01:06:19,840 --> 01:06:21,709
CONFUSION WITH COPYRIGHT SO WE 

1694
01:06:21,709 --> 01:06:23,811
CHANGED OUR TO TAILORVIS 

1695
01:06:23,811 --> 01:06:24,745
TOOLBOX.

1696
01:06:24,745 --> 01:06:27,815
THIS IS WEB BASED SOFTWARE, 

1697
01:06:27,815 --> 01:06:30,985
INDIVIDUALS CAN SIGN-IN  AT THE 

1698
01:06:30,985 --> 01:06:31,618
ORGANIZATIONAL LEVEL.

1699
01:06:31,618 --> 01:06:34,054
THEY HAVE A REPOSITORY OF 

1700
01:06:34,054 --> 01:06:35,122
INFOGRAPHICKS.

1701
01:06:35,122 --> 01:06:36,824
THERE ARE DIFFERENT FUNCTIONS 

1702
01:06:36,824 --> 01:06:39,426
AT THE ORGANIZATIONAL LEVEL AS 

1703
01:06:39,426 --> 01:06:41,962
WELL AS INDIVIDUALS WITHIN THE 

1704
01:06:41,962 --> 01:06:42,329
ORGANIZATIONAL.

1705
01:06:42,329 --> 01:06:46,033
THEY CAN SELECT A BASE 

1706
01:06:46,033 --> 01:06:47,067
INFOGRAPHIC.

1707
01:06:47,067 --> 01:06:50,337
THEY CAN BRAND IT FROM THEIR 

1708
01:06:50,337 --> 01:06:50,671
ORGANIZATION.

1709
01:06:50,671 --> 01:06:51,105
THE COMMUNITY-BASED 

1710
01:06:51,105 --> 01:06:51,805
ORGANIZATIONS ARE THE ONE WHO'S 

1711
01:06:51,805 --> 01:06:52,940
HAVE WORKED HARD TO HAVE THE 

1712
01:06:52,940 --> 01:06:54,341
TRUST OF THE COMMUNITY.

1713
01:06:54,341 --> 01:06:57,311
THEY CAN ADD THEIR LOGO, THEY 

1714
01:06:57,311 --> 01:07:02,149
CAN EDIT TEXT, AND OF COURSE 

1715
01:07:02,149 --> 01:07:03,817
THEY CAN TAILOR IT TO 

1716
01:07:03,817 --> 01:07:04,985
INDIVIDUAL NEEDS IN THE 

1717
01:07:04,985 --> 01:07:07,454
INSTANCE OF THE INVESTIGATION.

1718
01:07:07,454 --> 01:07:11,458
WE HAVE THE INFOGRAPHICS AVAIL 

1719
01:07:11,458 --> 01:07:14,728
ABLE IN FOUR LANGUAGES.

1720
01:07:14,728 --> 01:07:17,498
ENGLISH, SPANISH,  BANGLA AND 

1721
01:07:17,498 --> 01:07:27,841
SIMPLIFIED CHINESE.

1722
01:07:38,218 --> 01:07:40,587
HAVE IT BE SCALABLE TO OTHER 

1723
01:07:40,587 --> 01:07:41,422
COMMUNITY NEEDS.

1724
01:07:41,422 --> 01:07:43,290
WE HAVE BEEN CAREFUL HOW WE 

1725
01:07:43,290 --> 01:07:50,697
DEVELOPED THE SOFTWARE.

1726
01:07:50,697 --> 01:07:54,635
SO WE HAVE THE OPPORTUNITY TO 

1727
01:07:54,635 --> 01:07:58,505
EXPAND TAILORVIS THROUGH IGNITE.

1728
01:07:58,505 --> 01:08:01,075
IT STANDS FOR INTERDISCIPLINARY 

1729
01:08:01,075 --> 01:08:03,811
GUIDED NETWORK FOR 

1730
01:08:03,811 --> 01:08:07,681
INVESTIGATION, TRANSLATION AND 

1731
01:08:07,681 --> 01:08:10,050
EQUITY.

1732
01:08:10,050 --> 01:08:13,120
AND WHEN ONE OF THE IGNITE 

1733
01:08:13,120 --> 01:08:16,623
ACTIVITIES IS TO HOST DIFFERENT 

1734
01:08:16,623 --> 01:08:20,894
TYPES OF EXPERIENCE IN WHICH 

1735
01:08:20,894 --> 01:08:21,528
INDIVIDUALS CAN INTERACT WITH 

1736
01:08:21,528 --> 01:08:26,700
THE ALL OF US RESEARCHER WORK 

1737
01:08:26,700 --> 01:08:30,904
BENCH AND THIS ACTIVITY IS THIS 

1738
01:08:30,904 --> 01:08:36,477
GRANT, THE CONTACT P.I.'S MY 

1739
01:08:36,477 --> 01:08:37,177
COLLEAGUE, ELIZABETH COHEN.

1740
01:08:37,177 --> 01:08:38,846
ONE OF THE THINGS THAT HAPPENS 

1741
01:08:38,846 --> 01:08:49,389
IN THE DATA SANDBOX ACTIVITY IS 

1742
01:08:49,890 --> 01:08:51,258
PEOPLE ARE TRAINED AND THEY DO 

1743
01:08:51,258 --> 01:08:53,127
A NUMBER OF DIFFERENT 

1744
01:08:53,127 --> 01:08:55,696
ACTIVITIES TO GAIN FAMILIARITY 

1745
01:08:55,696 --> 01:08:58,232
WITH THE DATA.

1746
01:08:58,232 --> 01:09:00,334
THIS IS CUSTOMIZED TO THE GROUP 

1747
01:09:00,334 --> 01:09:03,871
THAT THE SANDBOX IS BEING HELD 

1748
01:09:03,871 --> 01:09:05,973
FOR SO ONE EXAMPLE IS THEY CAN 

1749
01:09:05,973 --> 01:09:07,241
DO A TREASURE HUNT.

1750
01:09:07,241 --> 01:09:08,809
AND THIS WAY PEOPLE CAN SEARCH 

1751
01:09:08,809 --> 01:09:12,346
FOR INFORMATION THAT MIGHT BE 

1752
01:09:12,346 --> 01:09:14,047
PARTICULARLY USEFUL TO THEIR 

1753
01:09:14,047 --> 01:09:14,681
PARTICULAR COMMUNITY.

1754
01:09:14,681 --> 01:09:19,486
SO HOW WE ARE WORKING WITH THE 

1755
01:09:19,486 --> 01:09:23,524
PROGRAM IS ADDED THE TAILORVIS 

1756
01:09:23,524 --> 01:09:26,293
TOOLBOX TO THE DATA SANDBOX.

1757
01:09:26,293 --> 01:09:29,696
SAY YOU COME FROM A 

1758
01:09:29,696 --> 01:09:32,766
COMMUNITY-BASED ORGANIZATION 

1759
01:09:32,766 --> 01:09:35,536
THAT IS SERVING THE LATINO 

1760
01:09:35,536 --> 01:09:36,937
POPULATION, YOU WILL LEARN 

1761
01:09:36,937 --> 01:09:39,239
THINGS ABOUT YOUR COMMUNITY AND 

1762
01:09:39,239 --> 01:09:44,711
ABOUT THE POPULATION THROUGH 

1763
01:09:44,711 --> 01:09:46,113
THE DISCOVERY ACTIVITY AS PART 

1764
01:09:46,113 --> 01:09:47,047
OF THE TOOLBOX.

1765
01:09:47,047 --> 01:09:50,551
BUT THEN WE WILL HAVE PRE-BUILT 

1766
01:09:50,551 --> 01:09:56,356
TEMPLATES OF INFOGRAPHICS SO 

1767
01:09:56,356 --> 01:10:00,227
THAT AS ADDITIONAL ASPECT OF 

1768
01:10:00,227 --> 01:10:01,161
RETURN TO COMMUNITY, THEY WILL 

1769
01:10:01,161 --> 01:10:03,997
BE ABLE TO CREATE AN 

1770
01:10:03,997 --> 01:10:06,066
INFOGRAPHIC THAT THEY CAN TAKE 

1771
01:10:06,066 --> 01:10:09,136
INTO THEIR COMMUNITY FROM THEIR 

1772
01:10:09,136 --> 01:10:11,705
COMMUNITY-BASED O.

1773
01:10:11,705 --> 01:10:12,406
ORGANIZATION.

1774
01:10:12,406 --> 01:10:14,508
I THINK OF THIS AS ANOTHER 

1775
01:10:14,508 --> 01:10:21,848
EXAMPLE OF A STRATEGY TO 

1776
01:10:21,848 --> 01:10:22,783
PERMEATE HERMENEUTICAL 

1777
01:10:22,783 --> 01:10:25,385
INJUSTICE BECAUSE WE ARE 

1778
01:10:25,385 --> 01:10:26,119
CREATING TOOLS AND RESOURCES 

1779
01:10:26,119 --> 01:10:27,754
THAT CAN HELP PEOPLE MAKE MORE 

1780
01:10:27,754 --> 01:10:31,725
SENSE OF THE DATA AND ALSO TO 

1781
01:10:31,725 --> 01:10:34,061
MAKE ADDITIONAL USE OF IT IN 

1782
01:10:34,061 --> 01:10:38,799
WAYS THAT ARE COMPREHENSIBLE 

1783
01:10:38,799 --> 01:10:43,937
AND CULTURALLY CONGRUENT.

1784
01:10:43,937 --> 01:10:45,572
IN CONCLUDING, IT'S BEEN FUN 

1785
01:10:45,572 --> 01:10:48,141
FOR ME TO SHARE MY REFLECTIONS 

1786
01:10:48,141 --> 01:10:49,776
AND HOW I HAVE BEEN THINKING 

1787
01:10:49,776 --> 01:10:51,411
ABOUT THIS, I'M ONE OF THOSE 

1788
01:10:51,411 --> 01:10:53,747
PEOPLE WHO JUST LOVES A GOOD 

1789
01:10:53,747 --> 01:10:55,115
FRAMEWORK AND BEING ABLE TO 

1790
01:10:55,115 --> 01:10:57,985
REALLY THINK ABOUT THINGS 

1791
01:10:57,985 --> 01:10:59,853
THROUGH DIFFERENT LENSES, SO 

1792
01:10:59,853 --> 01:11:02,856
REALLY LOOKING AT THE ROLE OF 

1793
01:11:02,856 --> 01:11:05,892
COMMUNITY ENGAGEMENT AND HEALTH 

1794
01:11:05,892 --> 01:11:08,028
INFORMATICS AND DATA SCIENCE 

1795
01:11:08,028 --> 01:11:09,896
INTERVENTION, MY PERSPECTIVE IS 

1796
01:11:09,896 --> 01:11:11,331
THAT THIS REALLY SUGGESTS A 

1797
01:11:11,331 --> 01:11:14,301
COUPLE OF OF NEEDS IS ONE, WE 

1798
01:11:14,301 --> 01:11:16,637
REALLY NEED TO BROADEN 

1799
01:11:16,637 --> 01:11:18,739
DIVERSITY OF INPUT INCLUSIVE OF 

1800
01:11:18,739 --> 01:11:20,607
LIVED EXPERIENCE, IN THE 

1801
01:11:20,607 --> 01:11:23,210
CREATION AND IMPLEMENTATION OF 

1802
01:11:23,210 --> 01:11:26,713
DATASETS ALGORITHMS AND HEALTH 

1803
01:11:26,713 --> 01:11:27,514
INFORMATICS.

1804
01:11:27,514 --> 01:11:30,117
WE NEED TO THINK OF WHOSE 

1805
01:11:30,117 --> 01:11:33,687
VOICES ARE BEING SILENCED OR 

1806
01:11:33,687 --> 01:11:37,357
MISSING WHICH COULD ADD BIASES 

1807
01:11:37,357 --> 01:11:41,161
AND ALSO FAIL TO REALLY ADVANCE 

1808
01:11:41,161 --> 01:11:43,563
HEALTH EQUITY, WE ALSO NEED TO 

1809
01:11:43,563 --> 01:11:45,198
DEVELOP DIFFERENT TYPES OF 

1810
01:11:45,198 --> 01:11:49,002
STRATEGIES AND TOOLS THAT 

1811
01:11:49,002 --> 01:11:49,703
FACILITATE COMMUNITY, 

1812
01:11:49,703 --> 01:11:52,339
DETERMINATION AND 

1813
01:11:52,339 --> 01:11:52,873
PRIORITIZATION OF 

1814
01:11:52,873 --> 01:11:54,207
HEALTH-RELATED NEEDS AND THE 

1815
01:11:54,207 --> 01:11:55,375
KINDS OF RESOURCES THAT ARE 

1816
01:11:55,375 --> 01:11:57,277
NEEDED TO MEET THOSE NEEDS.

1817
01:11:57,277 --> 01:12:00,080
WE ALSO NEED TO THINK ABOUT 

1818
01:12:00,080 --> 01:12:01,915
STRATEGIES AND TOOLS THAT 

1819
01:12:01,915 --> 01:12:06,019
INCREASE COMMUNITY CAPACITY FOR 

1820
01:12:06,019 --> 01:12:07,154
CO-PRODUCTION, TRANSLATION AND 

1821
01:12:07,154 --> 01:12:08,088
DISSEMINATION OF INFORMATION 

1822
01:12:08,088 --> 01:12:18,332
AND KNOWLEDGE.

1823
01:12:22,436 --> 01:12:24,471
I SPENT TIME, I WAS THE 

1824
01:12:24,471 --> 01:12:26,440
ANNOYING AUDIENCE MEMBER WHO 

1825
01:12:26,440 --> 01:12:28,275
WOULD ASK ALMOST THE SAME 

1826
01:12:28,275 --> 01:12:29,343
QUESTION EVERY PANEL, WHICH 

1827
01:12:29,343 --> 01:12:30,644
WAS, DOES THE COMMUNITY HAVE 

1828
01:12:30,644 --> 01:12:31,812
THE DATA THEY NEED?

1829
01:12:31,812 --> 01:12:33,947
WHAT TYPE OF TOOLS WOULD THEY 

1830
01:12:33,947 --> 01:12:35,615
NEED TO BE ABLE TO ENGAGE MORE 

1831
01:12:35,615 --> 01:12:37,951
AS WE THINK ABOUT INTERVENTIONS 

1832
01:12:37,951 --> 01:12:42,222
TO MAKE THE COMMUNITY MORE SAFE 

1833
01:12:42,222 --> 01:12:44,558
AND ONE OF THE OTHER PLACES I'M 

1834
01:12:44,558 --> 01:12:46,460
GOING WITH MY OWN WORK WITH THE 

1835
01:12:46,460 --> 01:12:49,096
TOOLBOX IS REALLY IN THE AREA 

1836
01:12:49,096 --> 01:12:50,497
OF PREVENTION AND FIREARM 

1837
01:12:50,497 --> 01:12:50,997
INJURY.

1838
01:12:50,997 --> 01:12:55,936
SO IN ADDITION TO THINKING 

1839
01:12:55,936 --> 01:12:58,472
ABOUT THAT DIVERSITY OF INPUT 

1840
01:12:58,472 --> 01:13:02,309
AND STRATEGIES AND TOOLS IT'S 

1841
01:13:02,309 --> 01:13:04,644
IMPORTANT WE DESIGN OR DEVELOP 

1842
01:13:04,644 --> 01:13:12,185
SCIENCE FRAMEWORKS THAT SUPPORT 

1843
01:13:12,185 --> 01:13:13,286
THE EPISTEMIC JUSTICE.

1844
01:13:13,286 --> 01:13:14,888
I'M EXCITED ABOUT THE WORK THE 

1845
01:13:14,888 --> 01:13:17,324
WORKING GROUP IS DOING FROM THE 

1846
01:13:17,324 --> 01:13:19,993
NEXT TRACK.

1847
01:13:19,993 --> 01:13:23,730
COMMITTEE AND ALSO TIED TO THE 

1848
01:13:23,730 --> 01:13:24,498
DIRECTOR'S ADVISORY COMMITTEE 

1849
01:13:24,498 --> 01:13:28,535
BECAUSE IT'S POTENTIAL TO 

1850
01:13:28,535 --> 01:13:30,637
REALLY ADVANCE A SCIENCE POLICY 

1851
01:13:30,637 --> 01:13:34,808
FRAMEWORK THAT WOULD SUPPORT 

1852
01:13:34,808 --> 01:13:35,842
EPISTEMIC JUSTICE.

1853
01:13:35,842 --> 01:13:37,711
WITH THAT, SOME 

1854
01:13:37,711 --> 01:13:38,345
ACKNOWLEDGMENTS, FUNDING, THE 

1855
01:13:38,345 --> 01:13:41,014
IMPORTANCE OF THE COMMUNITY 

1856
01:13:41,014 --> 01:13:44,351
PARTNERS, THE EXPERTS BOTH IN 

1857
01:13:44,351 --> 01:13:46,219
VISUALIZATION AND CULTURE THAT 

1858
01:13:46,219 --> 01:13:48,555
HAVE BEEN REFLECTED IN THE WORK 

1859
01:13:48,555 --> 01:13:49,489
I'VE SHARED TODAY.

1860
01:13:49,489 --> 01:13:52,759
AND WITH THAT, I THINK WE CAN 

1861
01:13:52,759 --> 01:13:54,895
GO TO DR. RESNICK WHO IS GOING 

1862
01:13:54,895 --> 01:14:02,569
TO FACILITATE THE DISCUSSION.

1863
01:14:02,569 --> 01:14:04,438
>> Jeffrey Reznick: THANK
YOU, 

1864
01:14:04,438 --> 01:14:10,877
DR. BAKKEN VERY MUCH FOR THAT 

1865
01:14:10,877 --> 01:14:11,311
PRESENTATION, VERY 

1866
01:14:11,311 --> 01:14:12,012
THOUGHT-PROVOKING AND IMPORTANT.

1867
01:14:12,012 --> 01:14:14,514
WE HAVE A COUPLE QUESTIONS.

1868
01:14:14,514 --> 01:14:16,450
CAN YOU SPEAK TO HOW THESE 

1869
01:14:16,450 --> 01:14:18,819
IDEAS PLAY OUT IN TERMS OF 

1870
01:14:18,819 --> 01:14:20,387
PUBLISHING.

1871
01:14:20,387 --> 01:14:21,354
THE PUBLISHING ECOSYSTEM.

1872
01:14:21,354 --> 01:14:22,289
THANK YOU.

1873
01:14:22,289 --> 01:14:25,759
>> Suzanne Bakken: THANKS,
I 

1874
01:14:25,759 --> 01:14:26,460
REALLY APPRECIATE THE 

1875
01:14:26,460 --> 01:14:27,093
OPPORTUNITY TO SAY SOMETHING 

1876
01:14:27,093 --> 01:14:27,861
ABOUT THAT.

1877
01:14:27,861 --> 01:14:30,464
I AM THE EDITOR AND CHIEF OF 

1878
01:14:30,464 --> 01:14:34,434
THE JOURNAL OF THE AMERICAN 

1879
01:14:34,434 --> 01:14:34,901
MEDICAL INFORMATIC'S 

1880
01:14:34,901 --> 01:14:37,671
ASSOCIATION.

1881
01:14:37,671 --> 01:14:38,338
I RECENTLY HAD THE OPPORTUNITY 

1882
01:14:38,338 --> 01:14:40,707
TO REALLY THINK ABOUT THIS FROM 

1883
01:14:40,707 --> 01:14:42,843
THE PERSPECTIVE OF THE JOURNAL.

1884
01:14:42,843 --> 01:14:45,378
AND WE SPENT TIMES THINKING, WE 

1885
01:14:45,378 --> 01:14:49,783
HAD DONE A LOT OF PUBLICATION 

1886
01:14:49,783 --> 01:14:52,118
IN OUR JOURNAL ABOUT HEALTH 

1887
01:14:52,118 --> 01:14:56,189
EQUITY BUT I HAVE, EXPLICITLY 

1888
01:14:56,189 --> 01:14:59,926
MADE IT A NEW GOAL FOR THE 

1889
01:14:59,926 --> 01:15:02,696
JOURNAL MOVING FORWARD AND IT 

1890
01:15:02,696 --> 01:15:05,098
WILL BE IN OUR JANUARY 1st 

1891
01:15:05,098 --> 01:15:06,666
EDITORIAL.

1892
01:15:06,666 --> 01:15:10,770
WE TRACE THE PREVIOUS EDITOR'S 

1893
01:15:10,770 --> 01:15:14,508
AND CHIEF OF AMIA AND I DID A 

1894
01:15:14,508 --> 01:15:16,343
HISTORICAL LOOK AND SAW OUR 

1895
01:15:16,343 --> 01:15:18,678
INITIAL GOALS WERE GOOD BUT WE 

1896
01:15:18,678 --> 01:15:19,646
NEEDED AN ADDITIONAL GOAL 

1897
01:15:19,646 --> 01:15:20,313
MOVING FORWARD.

1898
01:15:20,313 --> 01:15:23,917
AND HOW THIS MIGHT PLAY OUT IS 

1899
01:15:23,917 --> 01:15:25,285
REALLY THINKING ABOUT SOME OF 

1900
01:15:25,285 --> 01:15:28,922
THE CONCEPTS THAT CAME UP IN 

1901
01:15:28,922 --> 01:15:30,290
THAT LANCET PUBLIC HEALTH 

1902
01:15:30,290 --> 01:15:32,192
PUBLICATION.

1903
01:15:32,192 --> 01:15:33,827
THINKING ABOUT, THAT CAME UP 

1904
01:15:33,827 --> 01:15:37,297
WAS A LOT ABOUT NORTH-SOUTH 

1905
01:15:37,297 --> 01:15:38,031
RELATIONSHIPS AND THE 

1906
01:15:38,031 --> 01:15:40,367
IMPORTANCE OF WHERE YOU ARE IN 

1907
01:15:40,367 --> 01:15:41,935
THE AUTHOR'S LIST AND ALWAYS 

1908
01:15:41,935 --> 01:15:44,337
HAVING THE NORTH SCIENTIST 

1909
01:15:44,337 --> 01:15:47,240
MAYBE BEING DOMINANT AND MAYBE 

1910
01:15:47,240 --> 01:15:51,511
NOT RECOGNIZING THE IMPORTANCE 

1911
01:15:51,511 --> 01:15:52,712
OF CONTEXTUAL KNOWLEDGE.

1912
01:15:52,712 --> 01:15:54,814
SOME OF THESE IDEAS THE 

1913
01:15:54,814 --> 01:15:57,150
IMPORTANCE AND VALUE OF LOCAL 

1914
01:15:57,150 --> 01:15:59,286
KNOWLEDGE CAME UP A LOT THE 

1915
01:15:59,286 --> 01:16:00,720
LAST COUPLE DAYS IN THE 

1916
01:16:00,720 --> 01:16:02,122
COMMUNITY SAFETY WORKSHOP.

1917
01:16:02,122 --> 01:16:03,957
IT'S NOT BECAUSE PEOPLE ARE 

1918
01:16:03,957 --> 01:16:08,795
SAYING YES, SCIENCE MOVES 

1919
01:16:08,795 --> 01:16:09,496
THROUGH GENERALIZABLE KNOWLEDGE.

1920
01:16:09,496 --> 01:16:11,164
BUT WHEN WE ARE MOVING THINGS 

1921
01:16:11,164 --> 01:16:12,766
IN A COMMUNITY WE REALLY HAVE 

1922
01:16:12,766 --> 01:16:15,101
TO PAY ATTENTION TO THAT LOCAL 

1923
01:16:15,101 --> 01:16:16,303
KNOWLEDGE.

1924
01:16:16,303 --> 01:16:17,470
SO IN PUBLICATION THINKING 

1925
01:16:17,470 --> 01:16:22,309
ABOUT HOW DO WE VALUE THAT 

1926
01:16:22,309 --> 01:16:23,410
GENERALIZABLE KNOWLEDGE, VERSUS 

1927
01:16:23,410 --> 01:16:27,814
HAVING INPUT OF THE 

1928
01:16:27,814 --> 01:16:28,548
CONTEXTUALIZED KNOWLEDGE THAT 

1929
01:16:28,548 --> 01:16:30,417
IS SO IMPORTANT FOR THE 

1930
01:16:30,417 --> 01:16:31,318
APPLICATION OF SCIENCE IN 

1931
01:16:31,318 --> 01:16:31,818
PRACTICE.

1932
01:16:31,818 --> 01:16:33,653
WHAT ARE THE DIFFERENT WAYS OF 

1933
01:16:33,653 --> 01:16:36,690
KNOWING AND HOW DO THEY GET 

1934
01:16:36,690 --> 01:16:39,759
INTEGRATED INTO A PUBLICATION 

1935
01:16:39,759 --> 01:16:44,397
AND ACKNOWLEDGED IN AUTHORSHIP?

1936
01:16:44,397 --> 01:16:46,366
>> Jeffrey Reznick: THANK
YOU, 

1937
01:16:46,366 --> 01:16:47,667
VERY MUCH.

1938
01:16:47,667 --> 01:16:49,536
A RELATED QUESTION HAS COME IN.

1939
01:16:49,536 --> 01:16:51,638
CAN YOU SPEAK ALSO TO HOW THESE 

1940
01:16:51,638 --> 01:16:54,641
IDEAS PLAY OUT IN TERMS OF THE 

1941
01:16:54,641 --> 01:16:57,811
PROFESSIONAL TRAINING ECOSYSTEM.

1942
01:16:57,811 --> 01:16:58,979
>> Suzanne Bakken: YEAH, I

1943
01:16:58,979 --> 01:17:06,953
THINK THIS IS INCREDIBLY 

1944
01:17:06,953 --> 01:17:07,220
IMPORTANT.

1945
01:17:07,220 --> 01:17:11,224
AND I THINK THESE IDEAS ARE NOT 

1946
01:17:11,224 --> 01:17:14,227
BROADLY INCORPORATED INTO 

1947
01:17:14,227 --> 01:17:21,101
TRAINING PROGRAMS IN HEALTH 

1948
01:17:21,101 --> 01:17:21,901
INFORMATICS, BIOMEDICAL AND 

1949
01:17:21,901 --> 01:17:22,936
DATA SCIENCE.

1950
01:17:22,936 --> 01:17:24,604
I REALLY THOUGHT ABOUT IT A LOT 

1951
01:17:24,604 --> 01:17:27,674
IN THE CLASSES THAT I TEACH AT 

1952
01:17:27,674 --> 01:17:28,742
COLUMBIA.

1953
01:17:28,742 --> 01:17:30,176
SO WE DO INTEGRATE THESE 

1954
01:17:30,176 --> 01:17:32,746
NOTIONS.

1955
01:17:32,746 --> 01:17:35,782
AND SO, TRAINING PROGRAMS ARE 

1956
01:17:35,782 --> 01:17:45,158
CLEARLY ADDRESSING THINGS SUCH 

1957
01:17:45,158 --> 01:17:46,059
AS ALGORHYTHMIC FAIRNESS AND 

1958
01:17:46,059 --> 01:17:47,227
BIAS.

1959
01:17:47,227 --> 01:17:48,428
THERE'S NO DOUBT THAT KIND OF 

1960
01:17:48,428 --> 01:17:49,562
THING IS THERE.

1961
01:17:49,562 --> 01:17:51,264
BUT I THINK MORE BROADLY, 

1962
01:17:51,264 --> 01:17:54,734
REALLY THINK ABOUT THAT NOTION 

1963
01:17:54,734 --> 01:17:57,303
OF WHO IS MISSING, SILENCING 

1964
01:17:57,303 --> 01:18:00,273
THE VOICES AND REALLY THINKING 

1965
01:18:00,273 --> 01:18:05,679
ABOUT IT FROM RECOGNIZING A 

1966
01:18:05,679 --> 01:18:07,647
PERSON'S CAPACITY AS A KNOWER.

1967
01:18:07,647 --> 01:18:13,420
SO I THINK THE IDEAS ARE NOT 

1968
01:18:13,420 --> 01:18:14,621
WIDELY INTEGRATED AT THE MOMENT.

1969
01:18:14,621 --> 01:18:17,390
BUT I THINK IT'S A IMPORTANT 

1970
01:18:17,390 --> 01:18:19,059
LENS THAT OUR FIELD CAN APPLY 

1971
01:18:19,059 --> 01:18:23,396
TO LOOK AT TRAINING AS WELL.

1972
01:18:23,396 --> 01:18:24,898
>> Jeffrey Reznick: THANK
YOU, 

1973
01:18:24,898 --> 01:18:25,932
DR. BAKKEN.

1974
01:18:25,932 --> 01:18:28,735
ANOTHER QUESTION, IN YOUR 

1975
01:18:28,735 --> 01:18:30,837
COMMUNITY CONVERSATIONS ABOUT 

1976
01:18:30,837 --> 01:18:33,206
COMMUNITY CONCERNS AND POINTING 

1977
01:18:33,206 --> 01:18:34,374
TO SOCIAL DETERMINANTS OF 

1978
01:18:34,374 --> 01:18:36,676
HEALTH, TO WHAT EXTENT DID 

1979
01:18:36,676 --> 01:18:37,877
LOCAL HISTORY AND EXPERIENCE 

1980
01:18:37,877 --> 01:18:39,646
PLAY A PART IN THESE 

1981
01:18:39,646 --> 01:18:44,617
CONVERSATIONS?

1982
01:18:44,617 --> 01:18:49,055
>> Suzanne Bakken: YEAH,
IT 

1983
01:18:49,055 --> 01:18:53,259
DEFINITELY COMES UP.

1984
01:18:53,259 --> 01:18:55,361
AND ONE OF THE THINGS I WAS 

1985
01:18:55,361 --> 01:18:59,165
WONDERING IF WE WOULD SEE, WE 

1986
01:18:59,165 --> 01:19:07,273
HEAR A LOT ABOUT THE ACADEMIA 

1987
01:19:07,273 --> 01:19:10,110
VERSUS THE COMMUNITY 

1988
01:19:10,110 --> 01:19:20,653
PERSPECTIVE, WE ACTUALLY DIDN'T 

1989
01:19:22,422 --> 01:19:27,494
UHERO AS MUCH ABOUT COLUMBIA OR 

1990
01:19:27,494 --> 01:19:28,895
XYZ DID THIS IN THE PAST.

1991
01:19:28,895 --> 01:19:31,898
THE PEOPLE IN OUR SAMPLE HAD A 

1992
01:19:31,898 --> 01:19:34,968
HIGH TRUST OF HEALTHCARE 

1993
01:19:34,968 --> 01:19:40,440
PROVIDERS, INCLUDING OUR LOCAL 

1994
01:19:40,440 --> 01:19:41,341
INSTITUTIONS BUT DEFINITELY 

1995
01:19:41,341 --> 01:19:44,511
KIND OF HISTORIC ATROCITIES 

1996
01:19:44,511 --> 01:19:48,081
CAME UP PREDOMINANTLY MORE IN 

1997
01:19:48,081 --> 01:19:50,984
HARLEM THAN IN WASHINGTON 

1998
01:19:50,984 --> 01:19:53,820
HEIGHTS AND WITH THE BANGLA AND 

1999
01:19:53,820 --> 01:19:59,459
CHINESE POPULATIONS.

2000
01:19:59,459 --> 01:20:01,161
>> Jeffrey Reznick: THANK
YOU.

2001
01:20:01,161 --> 01:20:02,962
ANOTHER QUESTION, WHAT ARE YOUR 

2002
01:20:02,962 --> 01:20:05,064
THOUGHTS OF DISSEMINATION 

2003
01:20:05,064 --> 01:20:06,966
THROUGH NLM'S MEDLINE PLUS AND 

2004
01:20:06,966 --> 01:20:10,503
CONNECTING TO PATIENT PORTALS 

2005
01:20:10,503 --> 01:20:11,805
VIA MEDLINE PLUS CONNECT?

2006
01:20:11,805 --> 01:20:13,106
>> Suzanne Bakken:
ABSOLUTELY.

2007
01:20:13,106 --> 01:20:14,707
I'VE HAD THE OPPORTUNITY TO 

2008
01:20:14,707 --> 01:20:16,342
SERVE ON THE, IN ADDITION TO 

2009
01:20:16,342 --> 01:20:20,547
SERVING ON THE LIST SERVE HELP, 

2010
01:20:20,547 --> 01:20:22,182
OR SCIENTIFIC COUNSELORS I ALSO 

2011
01:20:22,182 --> 01:20:25,185
HAD THE OPPORTUNITY TO  A 

2012
01:20:25,185 --> 01:20:27,520
MEMBER OF THE BOARD OF REGENTS.

2013
01:20:27,520 --> 01:20:29,122
THERE'S DEFINITELY BEEN 

2014
01:20:29,122 --> 01:20:30,323
CONVERSATIONS I'VE HAD OR MAYBE 

2015
01:20:30,323 --> 01:20:32,826
WHEN I WAS ON THE NLM STRATEGIC 

2016
01:20:32,826 --> 01:20:33,693
PLANNING GROUP.

2017
01:20:33,693 --> 01:20:39,532
MY IDEA WAS THAT EVERY PAPER 

2018
01:20:39,532 --> 01:20:43,469
SHOULD HAVE AN INFOGRAPHIC THAT 

2019
01:20:43,469 --> 01:20:46,239
WOULD BE VERY ACCESSIBLE TO 

2020
01:20:46,239 --> 01:20:48,575
PEOPLE WITH DIFFERING LEVELS OF 

2021
01:20:48,575 --> 01:20:50,677
HEALTH LITERACY AND THAT WOULD 

2022
01:20:50,677 --> 01:20:55,682
GO, AND THAT WOULD BE ATTACHED 

2023
01:20:55,682 --> 01:20:57,951
IN PUBMED BECAUSE I THINK IT'S 

2024
01:20:57,951 --> 01:20:58,318
IMPORTANT.

2025
01:20:58,318 --> 01:21:00,620
MANY JOURNAL PUBLISHING IS 

2026
01:21:00,620 --> 01:21:01,821
CERTAINLY SOMETHING THAT'S 

2027
01:21:01,821 --> 01:21:04,824
MOVED TO MANY JOURNALS 

2028
01:21:04,824 --> 01:21:06,626
REQUESTING A TYPE OF 

2029
01:21:06,626 --> 01:21:10,797
INFOGRAPHIC, EITHER AS A 

2030
01:21:10,797 --> 01:21:11,931
GRAPHICAL ABSTRACT OR CENTRAL 

2031
01:21:11,931 --> 01:21:12,632
COMMUNICATION.

2032
01:21:12,632 --> 01:21:15,235
NOT ALL OF THEM ARE NECESSARILY 

2033
01:21:15,235 --> 01:21:16,402
FOCUSED WITH THINKING ABOUT 

2034
01:21:16,402 --> 01:21:18,037
THE, YOU KNOW, THE PUBLIC 

2035
01:21:18,037 --> 01:21:18,304
AUDIENCE.

2036
01:21:18,304 --> 01:21:20,874
BUT I THINK THIS IS VERY 

2037
01:21:20,874 --> 01:21:23,009
CONSISTENT WITH NLM'S MISSION 

2038
01:21:23,009 --> 01:21:28,781
WHAT I'VE LEARNED THROUGH THE 

2039
01:21:28,781 --> 01:21:29,682
STRATEGIC PLANNING PROCESS AS 

2040
01:21:29,682 --> 01:21:34,153
WELL AS OTHER THINGS IS NLM 

2041
01:21:34,153 --> 01:21:35,788
ENGENDERS A LOT OF BROAD TRUST 

2042
01:21:35,788 --> 01:21:37,824
BECAUSE OF THE PUBMED RESOURCE.

2043
01:21:37,824 --> 01:21:45,465
SO ANYTHING THAT WE CAN DO TO 

2044
01:21:45,465 --> 01:21:47,800
COMBAT MISINFORMATION, ADVANCE 

2045
01:21:47,800 --> 01:21:50,136
TRUST IN SCIENCE TO ATTACHING 

2046
01:21:50,136 --> 01:21:53,506
THINGS THAT ARE MORE BROADLY 

2047
01:21:53,506 --> 01:21:55,842
UNDERSTOOD AS PART OF PUBMED IS 

2048
01:21:55,842 --> 01:21:58,177
A GOOD THING IN CONTINUING TO 

2049
01:21:58,177 --> 01:22:03,383
PROMOTE THAT TRUST.

2050
01:22:03,383 --> 01:22:04,717
>> Jeffrey Reznick:
ABSOLUTELY 

2051
01:22:04,717 --> 01:22:04,918
AGREE.

2052
01:22:04,918 --> 01:22:05,885
OF COURSE.

2053
01:22:05,885 --> 01:22:08,454
ANOTHER QUESTION WE HAVE.

2054
01:22:08,454 --> 01:22:10,089
THIS INDIVIDUAL WRITES I'M 

2055
01:22:10,089 --> 01:22:13,793
INTRIGUED BY THE SUCCESSFUL 

2056
01:22:13,793 --> 01:22:14,460
INFOGRAPHIC ABOUT HIGH BLOOD 

2057
01:22:14,460 --> 01:22:15,094
PRESSURE.

2058
01:22:15,094 --> 01:22:18,197
COULD YOU SAY MORE ABOUT 

2059
01:22:18,197 --> 01:22:19,332
EFFECTIVENESS OR IMPACT ABOUT 

2060
01:22:19,332 --> 01:22:21,000
THIS KIND OF OUTREACH OR 

2061
01:22:21,000 --> 01:22:22,435
RETURNING INDIVIDUAL RESULTS ON 

2062
01:22:22,435 --> 01:22:23,670
IMPROVING HEALTH IN THE 

2063
01:22:23,670 --> 01:22:24,237
COMMUNITY.

2064
01:22:24,237 --> 01:22:26,339
ARE THERE SPECIFIC METRICS, ET 

2065
01:22:26,339 --> 01:22:28,241
CETERA, THAT YOU USED OR ARE 

2066
01:22:28,241 --> 01:22:29,375
THINKING ABOUT USING?

2067
01:22:29,375 --> 01:22:30,543
>> Suzanne Bakken: YES,
FOR 

2068
01:22:30,543 --> 01:22:32,645
MANY OF THE THINGS.

2069
01:22:32,645 --> 01:22:34,047
I'M GOING TO TALK ABOUT WHERE 

2070
01:22:34,047 --> 01:22:44,590
IS THE FOCUS OF OUR SCIENCE AND 

2071
01:22:50,096 --> 01:22:51,331
OUR INNOVATION AND IT'S AROUND 

2072
01:22:51,331 --> 01:22:52,565
THE DEVELOPMENT OF THE TOOLS 

2073
01:22:52,565 --> 01:22:54,634
AND THEN WE COLLABORATE WITH 

2074
01:22:54,634 --> 01:22:56,235
OTHER RESEARCHERS WHO USE OUR 

2075
01:22:56,235 --> 01:23:00,239
RESOURCES TO DO THE STUDIES.

2076
01:23:00,239 --> 01:23:02,275
THAT WOULD LOOK AT THE 

2077
01:23:02,275 --> 01:23:03,343
EFFECTIVENESS.

2078
01:23:03,343 --> 01:23:06,312
SO I CAN TALK ABOUT A COUPLE, I 

2079
01:23:06,312 --> 01:23:07,580
CAN TALK ABOUT A COUPLE IN 

2080
01:23:07,580 --> 01:23:12,518
GENERAL.

2081
01:23:12,518 --> 01:23:15,455
SOMEONE HAS USED THE BLOOD 

2082
01:23:15,455 --> 01:23:16,656
PRESSURE INFOGRAPHIC HAS BEEN 

2083
01:23:16,656 --> 01:23:25,031
USED BY A NEUROLOGIST, STRUT?

2084
01:23:25,031 --> 01:23:27,100
(?) NEUROLOGIST AT COLUMBIA IN 

2085
01:23:27,100 --> 01:23:30,136
A STUDY AND HAS SHOWN 

2086
01:23:30,136 --> 01:23:32,038
POST-STROKE, USED IT IN POST 

2087
01:23:32,038 --> 01:23:33,906
STROKE AND THEY HAVE SHOWN A 

2088
01:23:33,906 --> 01:23:35,208
DROP IN BLOOD PRESSURE.

2089
01:23:35,208 --> 01:23:36,743
SO THAT'S AN EXAMPLE OF THE 

2090
01:23:36,743 --> 01:23:37,844
BLOOD PRESSURE.

2091
01:23:37,844 --> 01:23:41,781
ONE OF OUR POSTDOCS HAS DONE A, 

2092
01:23:41,781 --> 01:23:44,317
SAMANTHA STONE BREAKER WHO IS 

2093
01:23:44,317 --> 01:23:46,419
AN ASSISTANT PROFESSOR AT THE 

2094
01:23:46,419 --> 01:23:48,521
UNIVERSITY OF COLORADO, HAS 

2095
01:23:48,521 --> 01:23:51,324
BEEN WORKING FOR ABOUT A DECADE 

2096
01:23:51,324 --> 01:23:55,528
ON DOING INFOGRAPHICS IN HIV, 

2097
01:23:55,528 --> 01:23:57,697
DESIGNED SPECIFICALLY FOR 

2098
01:23:57,697 --> 01:23:59,098
PATIENT PROVIDER COMMUNICATION.

2099
01:23:59,098 --> 01:24:04,037
AND SHE HAS EVIDENCE IN HER 

2100
01:24:04,037 --> 01:24:05,638
STUDY THAT SHE WAS ACTUALLY 

2101
01:24:05,638 --> 01:24:08,674
ABLE TO SHOW A DECREASED IN 

2102
01:24:08,674 --> 01:24:12,945
VIRAL LOAD AS THE RESULT OF THE 

2103
01:24:12,945 --> 01:24:13,880
COMMUNICATION INTERVENTION THAT 

2104
01:24:13,880 --> 01:24:15,782
INCLUDED THE INFOGRAPHICKS.

2105
01:24:15,782 --> 01:24:17,650
SO THE ANSWER IS WE DON'T KNOW 

2106
01:24:17,650 --> 01:24:19,485
THE EFFECTIVENESS OF EACH OF 

2107
01:24:19,485 --> 01:24:22,155
THESE THINGS, BUT WE MAKE OUR 

2108
01:24:22,155 --> 01:24:24,524
TOOLS AVAILABLE TO RESEARCHERS 

2109
01:24:24,524 --> 01:24:27,126
WHO WANT TO DO THOSE TYPES OF 

2110
01:24:27,126 --> 01:24:37,437
STUDIES WITH THEM.

2111
01:24:38,838 --> 01:24:40,606
>> Jeffrey Reznick: HOW
ARE THE 

2112
01:24:40,606 --> 01:24:43,409
TEXTS IN THEM COMPOSED AND HOW 

2113
01:24:43,409 --> 01:24:44,777
ARE THE ILLUSTRATIONS CONCEIVED?

2114
01:24:44,777 --> 01:24:46,913
>> Suzanne Bakken: YES AND
SO, 

2115
01:24:46,913 --> 01:24:48,581
WE HAVE USED DIFFERENT 

2116
01:24:48,581 --> 01:24:51,617
STRATEGIES THROUGH THE YEARS.

2117
01:24:51,617 --> 01:24:55,221
WE, I CONSIDER OUR APPROACH TO 

2118
01:24:55,221 --> 01:24:58,825
BE A HYBRID APPROACH.

2119
01:24:58,825 --> 01:25:01,394
WE START WITH A DESIGN BRIEF 

2120
01:25:01,394 --> 01:25:03,796
AND WHAT THE PURPOSE OF THE 

2121
01:25:03,796 --> 01:25:05,865
COMMUNICATION AND YOU KNOW, DO 

2122
01:25:05,865 --> 01:25:09,202
AN ENVIRONMENTAL SCAN, WHAT IS 

2123
01:25:09,202 --> 01:25:11,504
OUT THERE.

2124
01:25:11,504 --> 01:25:13,139
ABOUT THE CONCEPTUAL METAPHOR 

2125
01:25:13,139 --> 01:25:14,774
THAT MIGHT BE APPROPRIATE.

2126
01:25:14,774 --> 01:25:20,046
SO WE USUALLY GO TO THE 

2127
01:25:20,046 --> 01:25:22,315
COMMUNITY WITH AT LEAST SOME 

2128
01:25:22,315 --> 01:25:23,749
GENERAL IDEAS.

2129
01:25:23,749 --> 01:25:29,188
IN THE EARLY DAYS WE USED, AND 

2130
01:25:29,188 --> 01:25:30,423
THEN WE CO-PRODUCED.

2131
01:25:30,423 --> 01:25:37,196
IN THE EARLY DAYS IN WICER WE 

2132
01:25:37,196 --> 01:25:40,233
DID IN-HOUSE, DOCTORAL 

2133
01:25:40,233 --> 01:25:42,835
STUDENTS, POSTDOCS, ET,  ET 

2134
01:25:42,835 --> 01:25:44,036
CETERA, THE MEMBERS OF OUR TEAM 

2135
01:25:44,036 --> 01:25:45,872
DID ALL THE INFOGRAPHICS 

2136
01:25:45,872 --> 01:25:46,839
OURSELVES.

2137
01:25:46,839 --> 01:25:49,175
AND THEN AFTERWARDS WE HAD 

2138
01:25:49,175 --> 01:25:51,277
SPECIFICALLY AN URBAN LATINO 

2139
01:25:51,277 --> 01:26:00,753
GRAPHIC DESIGNER KIND OF WORK 

2140
01:26:00,753 --> 01:26:03,122
ON THE DESIGNS AFTERWARDS TO 

2141
01:26:03,122 --> 01:26:05,458
MAKE THEM MORE CULTURALLY 

2142
01:26:05,458 --> 01:26:05,758
APPROPRIATE.

2143
01:26:05,758 --> 01:26:07,326
OURS WERE MUCH LESS VIBRANT 

2144
01:26:07,326 --> 01:26:09,495
COLORS SO WE WORKED WITH THE 

2145
01:26:09,495 --> 01:26:11,964
DESIGNER AFTERWARDS.

2146
01:26:11,964 --> 01:26:13,799
SINCE THEN, WE CONSISTENTLY 

2147
01:26:13,799 --> 01:26:17,370
WORK WITH A GRAPHIC DESIGNER, 

2148
01:26:17,370 --> 01:26:20,606
IN SOME INSTANCES LIKE SAM 

2149
01:26:20,606 --> 01:26:22,942
STONE BREAKER'S WORK, SHE HAD 

2150
01:26:22,942 --> 01:26:26,379
THE GRAPHIC DESIGNER AS PART OF 

2151
01:26:26,379 --> 01:26:28,214
THE NEEDS SO THE GRAPHIC 

2152
01:26:28,214 --> 01:26:29,582
DESIGNER CAN WORK ON THE FLY 

2153
01:26:29,582 --> 01:26:31,751
AND SAY, HOW ABOUT THIS?

2154
01:26:31,751 --> 01:26:39,792
IN OTHER INSTANCES WE, ADRIANA 

2155
01:26:39,792 --> 01:26:41,961
ARCIA, WHO IS THE CREATIVE 

2156
01:26:41,961 --> 01:26:44,363
PERSON BEHIND THIS, SHE WORKS 

2157
01:26:44,363 --> 01:26:45,531
EXPLICITLY, HAS WORKED 

2158
01:26:45,531 --> 01:26:47,867
LONG-TERM WITH A DIFFERENT SET 

2159
01:26:47,867 --> 01:26:50,937
OF GRAPHIC DESIGNERS WHO HELP 

2160
01:26:50,937 --> 01:27:01,380
THE DESIGNS COME TO LIFE.

2161
01:27:02,014 --> 01:27:04,050
IT'S VARIED OVER TIME BUT WE 

2162
01:27:04,050 --> 01:27:05,117
ALWAYS INCLUDE A GRAPHIC 

2163
01:27:05,117 --> 01:27:15,294
DESIGNER.

2164
01:27:20,099 --> 01:27:22,568
>> Jeffrey Reznick: DR.
BAKKEN 

2165
01:27:22,568 --> 01:27:24,403
MENTIONED WORK WITH THIS 

2166
01:27:24,403 --> 01:27:26,105
COMMUNITY AND CAN SHARE 

2167
01:27:26,105 --> 01:27:27,506
EXAMPLES AND THIS INDIVIDUALS 

2168
01:27:27,506 --> 01:27:29,575
WRITES AND THANK YOU VERY MUCH 

2169
01:27:29,575 --> 01:27:30,977
FOR YOUR LECTURE.

2170
01:27:30,977 --> 01:27:32,445
DR. BAKKEN, WE HAVE TIME FOR 

2171
01:27:32,445 --> 01:27:33,913
ONE MORE QUESTION.

2172
01:27:33,913 --> 01:27:36,082
THAT IS WHAT ADVICE WOULD YOU 

2173
01:27:36,082 --> 01:27:38,184
HAVE FOR OTHER COMMUNITIES AND 

2174
01:27:38,184 --> 01:27:40,519
OTHER MEDICAL CENTERS FOR 

2175
01:27:40,519 --> 01:27:42,855
REPLICATING THIS GREAT SUCCESS 

2176
01:27:42,855 --> 01:27:44,090
IN YOUR COMMUNITY, WHAT ADVICE 

2177
01:27:44,090 --> 01:27:46,225
DO YOU HAVE?

2178
01:27:46,225 --> 01:27:47,693
WHAT GUIDANCE WOULD YOU OFFER 

2179
01:27:47,693 --> 01:27:49,295
THEM?

2180
01:27:49,295 --> 01:27:52,999
>> Suzanne Bakken: YOU
KNOW, I 

2181
01:27:52,999 --> 01:27:54,634
THINK, YOU KNOW, IT'S CLEAR 

2182
01:27:54,634 --> 01:27:55,768
THAT INSTITUTIONS HAVE TO GET 

2183
01:27:55,768 --> 01:28:00,473
READY TO DO THIS.

2184
01:28:00,473 --> 01:28:04,477
THE FUNDING AGENCIES ARE VERY 

2185
01:28:04,477 --> 01:28:06,112
FOCUSED, MORE INCREASINGLY 

2186
01:28:06,112 --> 01:28:08,881
FOCUSED ON COMMUNITY ENGAGEMENT.

2187
01:28:08,881 --> 01:28:10,750
AND INSTITUTIONS NEED TO HAVE 

2188
01:28:10,750 --> 01:28:13,586
THE RESOURCES TO HELP 

2189
01:28:13,586 --> 01:28:16,622
RESEARCHERS THAT DO THIS.

2190
01:28:16,622 --> 01:28:19,392
AND ONE OF THE OUTPUTS OF OUR 

2191
01:28:19,392 --> 01:28:21,494
NEXT TRACK ENGAGED WORKING 

2192
01:28:21,494 --> 01:28:24,297
GROUP IS TO REALLY PRODUCE NOT 

2193
01:28:24,297 --> 01:28:26,365
ONLY A FRAMEWORK, BUT HOPEFULLY 

2194
01:28:26,365 --> 01:28:28,768
A TOOLBOX THAT WILL HELP 

2195
01:28:28,768 --> 01:28:31,904
INSTITUTIONS BE ABLE TO DO THIS 

2196
01:28:31,904 --> 01:28:35,207
BETTER.

2197
01:28:35,207 --> 01:28:37,510
SO NOT EVERY RESEARCHER NEEDS 

2198
01:28:37,510 --> 01:28:39,845
TO KNOW HOW TO DO THIS BUT AN 

2199
01:28:39,845 --> 01:28:41,213
INSTITUTION MUST HAVE 

2200
01:28:41,213 --> 01:28:42,682
RESEARCHERS AND THE 

2201
01:28:42,682 --> 01:28:44,250
INSTITUTIONAL RESOURCES THAT 

2202
01:28:44,250 --> 01:28:48,421
MAKE IT POSSIBLE FOR ALL 

2203
01:28:48,421 --> 01:28:51,390
RESEARCHERS TO BE ABLE TO MEET 

2204
01:28:51,390 --> 01:28:54,193
THIS GOAL OF MITIGATING AT THE 

2205
01:28:54,193 --> 01:28:57,063
SYSTEMIC INJUSTICE.

2206
01:28:57,063 --> 01:28:58,964
>> Jeffrey Reznick: THANK
YOU, 

2207
01:28:58,964 --> 01:28:59,832
DR. BAKKEN, VERY MUCH.

2208
01:28:59,832 --> 01:29:01,400
I WOULD LIKE TO TAKE THIS 

2209
01:29:01,400 --> 01:29:03,169
OPPORTUNITY TO THANK YOU, 

2210
01:29:03,169 --> 01:29:04,103
AGAIN, ON BEHALF OF THE 

2211
01:29:04,103 --> 01:29:05,538
NATIONAL LIBRARY OF MEDICINE 

2212
01:29:05,538 --> 01:29:07,640
AND CERTAINLY IN COOPERATION 

2213
01:29:07,640 --> 01:29:10,910
WITH NLM ACTING DIRECTOR, STEVE 

2214
01:29:10,910 --> 01:29:12,111
SHERRY, GLENN CAMPBELL FROM OF 

2215
01:29:12,111 --> 01:29:13,713
THE FRIENDS OF THE NATIONAL 

2216
01:29:13,713 --> 01:29:15,915
LIBRARY OF MEDICINE AND 

2217
01:29:15,915 --> 01:29:18,651
GRETCHEN JACKSON FROM AMIA FOR 

2218
01:29:18,651 --> 01:29:20,286
A FANTASTIC LECTURE, 

2219
01:29:20,286 --> 01:29:20,886
THOUGHT-PROVOKING, IMPORTANT 

2220
01:29:20,886 --> 01:29:22,421
AND WE ARE PRIVILEGED TO HOST 

2221
01:29:22,421 --> 01:29:23,322
YOU THIS MORNING.

2222
01:29:23,322 --> 01:29:24,990
AND ALSO TO SAY THAT YOUR 

2223
01:29:24,990 --> 01:29:27,293
LECTURE WILL BE AVAILABLE IN 

2224
01:29:27,293 --> 01:29:29,161
THE NIH VIDEOCAST ARCHIVE IN A 

2225
01:29:29,161 --> 01:29:30,763
FEW DAYS.

2226
01:29:30,763 --> 01:29:32,398
SO THAT MANY, MANY MORE PEOPLE 

2227
01:29:32,398 --> 01:29:34,834
CAN APPRECIATE THE WORK YOU 

2228
01:29:34,834 --> 01:29:36,168
PRESENTED ON THIS OCCASION, 

2229
01:29:36,168 --> 01:29:38,671
WHICH HAS BEEN A PRIVILEGE.

2230
01:29:38,671 --> 01:29:40,339
THE ANNUAL LINDBERG KING 

2231
01:29:40,339 --> 01:29:44,310
LECTURE CO-SPONSORED BY NLM, 

2232
01:29:44,310 --> 01:29:45,811
NMLM AND AMIA.

2233
01:29:45,811 --> 01:29:46,879
DR. BAKKEN, THANK YOU VERY 

2234
01:29:46,879 --> 01:29:48,280
MUCH, IT'S BEEN A PRIVILEGE AND 

2235
01:29:48,280 --> 01:29:48,748
PLEASURE.

2236
01:29:48,748 --> 01:29:50,816
HAVE A GOOD DAY, AND FOR ALL OF 

2237
01:29:50,816 --> 01:29:52,918
YOU WHO TUNED IN THIS MORNING, 

2238
01:29:52,918 --> 01:29:55,554
I BID YOU FAREWELL AND A 

2239
01:29:55,554 --> 01:29:56,922
WONDERFUL DAY, WONDERFUL 

2240
01:29:56,922 --> 01:29:59,558
WEEKEND AND CERTAINLY A HAPPY 

2241
01:29:59,558 --> 01:30:01,093
AND HEALTHY HOLIDAY SEASON.

2242
01:30:01,093 --> 01:30:01,527
THANK YOU, BYE-BYE.

2243
01:30:01,527 --> 01:30:02,628
THANK YOU 

2244
01:30:02,628 --> 01:30:12,628
FOR HAVING ME.