OKAY.
SO WE HAVE SOME INTRODUCTIONS OF
NEW EX-OFFICIO MEMBERS.
I'LL START WITH MR. SCOTT
HANSCOM, ACTING DIRECTOR OF THE
NATIONAL AGRICULTURAL LIBRARY,
WELCOME.
>> THANK YOU.
NICE TO BE HERE.
SOME OF US WERE HERE LAST
SUMMER WITH YOU BUT MANY OF US,
SO IF YOU CAN DO QUICK
INTRODUCTIONS, YOUR NAME AND
INSTITUTION, THAT WOULD BE
REALLY HELPFUL.
SO I'M LOLA OGUNYEMI.
I'M THE DIRECTOR OF THE CENTER
FOR BIOMEDICAL INFORMATICS AT
CHARLES DREW UNIVERSITY AND A
PROFESSOR THERE.
>> HI, EVERYONE.
MY NAME IS MAICHOU LOR,
ASSISTANT PROFESSOR AT
UNIVERSITY OF WISCONSIN-MADISON.
>> MARY [INAUDIBLE] CURRENTLY
SENIOR ADVISOR -- [INAUDIBLE].
>> MORNING, EX-OFFICIO POSITION
FORREST THE ARMY SURGEON
GENERAL.
I WORK IN HER OFFICE WHERE I
OVERSEE MEDICAL [INAUDIBLE].
>> HI, I'M CHRIS SHAFFER,
UNIVERSITY LIBRARIAN AT UCSF.
>> -- OLSON, EX-OFFICIO FORREST
THE SURGEON GENERAL --
[INAUDIBLE]
>> [INAUDIBLE]
>> GOOD MORNING, EVERYONE,
PRIMARY CARE DOCTOR AND DIRECTOR
OF NEW YORK CITY --
>> I'M MICHELLE -- FROM THE
DIRECTOR OF BIOLOGICAL SCIENCES
AT THE NATIONAL SCIENCE
FOUNDATION.
>> CHRIS FORREST, NEW MEMBER --
PEDIATRICS -- [INAUDIBLE]
RECENTLY RETIRED --
[SPEAKERS NOT ON MIC]
[INAUDIBLE]
>> WELCOME, EVERYONE.
DR. -- WE'LL INTRODUCE HER LATER
WHEN SHE'S HERE.
SO NOW WE HAVE A REPORT FROM THE
OFFICE OF THE SURGEON GENERAL.
MS. JEANNE GARCIA-DAVIS WILL BE
GIVING THE PRESENTATION.
SHE IS IN THE SCIENCE AND POLICY
DIVISION IN THE OFFICE OF THE
SURGEON GENERAL.
>> MS. GARCIA, IF YOU CAN TURN
ON YOUR CAMERA AND UNMUTE.
WE ARE WORKING ON AN AUDIO ISSUE
IN THE ROOM.
WE APOLOGIZE FO.
>> THANK YOU.
PLEASE FEEL FREE TO MESSAGE OR
CALL ME AT ANY TIME AND THANK
YOU SO MUCH TO BILL AND TEAM FOR
ACCOMMODATING SO MANY OF US
VIRTUALLY AND WE REALLY
APPRECIATE IT AND IT'S REALLY
LOVELY TO SEE YOU AGAIN.
I'M SORRY I DID NOT HEAR IF
THERE WAS ANY OPENING OR
INTRODUCTION, BUT I'M SURE THERE
WAS, SO THANK YOU, IF THERE WAS
FROM EITHER DR. SHERRY OR
DR. HOLMES OR DR. OGUNYEMI,
THANK YOU SO MUCH FOR THE KIND
INTRODUCTION AND TO THE ENTIRE
BOARD OF REGENTS FOR HAVING US
BACK HERE TO GIVE OUR QUARTERLY
REPORT FROM THE OFFICE OF THE
U.S. SURGEON GENERAL.
WE APOLOGIZE, AGAIN, IN ADVANCE
OR RIGHT NOW ACTUALLY AS
DR. MURTHY AND THE TEAM, SOME OF
THE TEAM IS TRAVELING AND AWAY
FOR MEETINGS OUTSIDE OF
WASHINGTON.
BUT WE HOPE THAT YOU'RE HAVING
GREAT WEATHER AND A GREAT
MEETING IN PERSON SO FAR OVER AT
NIH, WHICH IS A LOVELY CAMPUS.
I LOOK FORWARD TO, ALONG WITH MY
COLLEAGUE, NOEL HURADA, WHO'S ON
THE LINE, TO SHARING OUR REPORT,
AS SHE WORKED VERY CLOSELY WITH
OUR PROJECT TEAM IN LEADING THE
RECENT WORK ON THE ADVISORY FOR
FIREARM VIOLENCE PREVENTION.
SO WITH THAT, WE'LL JUMP RIGHT
IN.
I JUST WANT TO SHARE, AGAIN, WE
HAVE OUR FLOW OF CONTENT, THE
AGENDA FOR OUR PORTION OF THIS
PRESENTATION.
WE'RE GOING TO GIVE A FEW BRIEF
UPDATES.
AS YOU KNOW, WE HAVE A LOT OF
DIFFERENT MOVING PARTS SIMILAR
TO YOUR WORK TOO IN TERMS OF THE
SUBJECT MATTER THAT WE SUPPORT
AND TRY TO DISSEMINATE AND
COMMUNICATE TO THE GENERAL
PUBLIC ON SOCIAL CONNECTION, ON
WORKPLACE WELL-BEING, AS WELL AS
ON YOUTH MENTAL HEALTH, AND THEN
MS. HURADA WILL MOVE INTO THE
FIREARM VIOLENCE PREVENTION
ADVISORY TO REPORT ON THAT WORK
AND ALSO WHAT WE'VE BEEN DOING
THERE, AND THEN WE'LL GLADLY
TAKE ANY QUESTIONS EITHER THAT
WE CAN ANSWER OR WE'RE HAPPY TO
FOLLOW UP WITH YOU AFTER.
SO A TOGETHER WITH YOU AT THE
NATIONAL LIBRARY OF MEDICINE AND
NIH, OUR MISSION IN PARTICULAR,
A GREAT REMINDER AS WE'RE
CLOSING OUT YEAR FOUR UNDER
DR. VIVEK MURTHY'S LEADERSHIP IN
ORDER TO SUPPORT AND SUSTAIN THE
WORK AND EFFORTS OVER THESE LAST
FEW YEARS, IT'S HARD TO BELIEVE
THAT FOUR YEARS HAVE GONE BY
THROUGH THE PANDEMIC, BUT OUR
MISSION CONTINUES AND WE'RE
EXCITED TO HELP CLOSE AT LEAST
OUR WORK OUT WITH DR. MURTHY AND
A SMOOTH TRANSITION INTO THE
NEXT EXCITING YEAR AHEAD.
SO WE'VE HAD A BUSY YEAR SO FAR.
AS YOU CAN SEE THE NUMBER OF
ADVISORIES THAT WE'VE BEEN
SUPPORTING ALONG WITH OTHER
SUBJECT MATTER EXPERTS AND
TECHNICAL LEADS, SO MANY OF THEM
FROM EITHER HEALTHCARE
ORGANIZATIONS AND SYSTEMS AND
ACADEMIC INSTITUTIONS, THE MOST
RECENT ONE, THE PARENTS' MENTAL
HEALTH ADVISORY AND CAREGIVERS
THAT WE'LL ALSO SHARE A BIT
ABOUT, INCLUDING THE FIREARM
VIOLENCE PREVENTION.
WE'VE HAD A BUSY YEAR AND A
COUPLE OF YEARS, AND WE ALSO
WANTED TO FLAG TOO THE OTHER
SIDE OF THE OFFICE OF THE
SURGEON GENERAL HOUSE IS REALLY
WORKING IN SUPPORTING OUR
NATION'S OVER 6,000 COMMISSION
CORPS PUBLIC HEALTH SERVICE
OFFICERS, SOME OF YOU WHO MAY
ALSO BE IN THE ROOM OR WORK
CLOSELY WITH, AND WE WANTED TO
WELCOME DR. DEMBEK, MANY OF YOU
MIGHT KNOW HIM, THE RECENT
EDITOR-IN-CHIEF WHO WAS
APPOINTED THIS SUMMER AS THE
TRANSITION FROM CAPTAIN JOHN
ISHGANDER, SO WE WELCOME HIM TO
THE TEAM AS WELL IN U.S. PORGT
THE NATION'S PUBLIC HEALTH
REPORT JOURNAL WITH DR. MURTHY.
SO AS SO MANY OF YOU KNOW I
THINK LAST TIME WE SPOKE, QUITE
CLOSELY ABOUT YOUR ROLES TOO AND
MANY HATS AS PARENTS, AS
CAREGIVERS OF CHILDREN, OF OLDER
ADULTS AND PARENTS, AND WE
WANTED TO SHARE JUST BRIEF
UPDATES ON BOTH THE WORK OP ON
SOCIAL CONNECTION AND ISOLATION
SINCE THE EPIDEMIC, THIS TIME
THE ADVISORY, THE ACADEMIC -- ON
LONELINESS AND ISOLATION CAME
OUT THIS TIME LAST YEAR FROM OUR
OFFICE AND THE PICTURE ON THE
LEFT, WE WANTED TO POINT TO
DR. MURTHY HAS BEEN ENGAGED WITH
THE WHO COMMISSION ON SOCIAL
CONNECTION AND LONELINESS, AND
HERE HE IS WITH A RECENT VISIT
TO JAPAN AND THE MINISTER OF
LONELINESS, WHICH IS AN
APPOINTED POSITION WNG THE
COUNTRY.
WITHIN THE
COUNTRY AND THE ONLY OTHER ONE
IS IN THE U.K., SO HE'S HAD
RECENT CONVERSATIONS NOT ONLY ON
THE GROUND ACROSS THE U.S. BUT
MORE RECENTLY GLOBALLY WITH A
NUMBER OF DIFFERENT BILATERAL
HEADS OF STATE AND MINISTERS.
SO THE OTHER PIECE THAT I WANTED
TO ALSO FLAG, TOO, IS THERE IS
CONTINUED INTEREST IN ENERGY AND
WE CONTINUE TO DO AND CONDUCT
BRIEFINGS ACROSS U.S.
INTERAGENCY PARTNERS, INTRA AND
INTERAGENCY, SO WITHIN THE
HEALTH AND HUMAN SERVICES
DEPARTMENT, WE'VE ALSO HAD A
NUMBER OF BRIEFINGS WITH, FOR
EXAMPLE, ACF AND THEN ALSO
INTERAGENCY WE'RE ALSO WORKING
WITH DOD AND THEN EXTERNALLY, WE
HAVE SOME BRIEFINGS COMING UP AS
WELL INCLUDING WITH THE WORLD
ECONOMIC FORUM AND THE NATIONAL
ASSOCIATION FOR STATE HEALTH
POLICY OR NASHPI.
SO THE FRAMEWORK FOR HEALTH IT O
CONTINUES WHICH IS EXCITING, WE
HAD PREVIOUSLY SPOKEN ABOUT HOW
IT'S AN EXCITING TIME FOR THIS
FOUR YEARS INTO AND HOPEFULLY
THROUGH THE COVID PANDEMIC AND
HOW WE HAVE FIVE GENERATIONS
WORKING TOGETHER TO BETTER
RECRUIT, RETAIN AND SUSTAIN
TODAY'S WORKFORCE.
SO VERY EXCITING, THE DRUM BEAT
ON THAT, AS WELL AS THE LAST
THING I'LL NOTE IS WE HAD THE
SAME YEAR THAT THE FRAMEWORK FOR
WORKPLACE MENTAL HEALTH AND
WELL-BEING CAME OUT, WE HAD THE
HEALTH WORKER BURNOUT ADVISORY
ADDRESSING HEALTH WORKER
BURNOUT.
THAT ADVISORY WAS IN 2022, THAT
SUMMER.
SO SINCE THAT TIME, WE'VE ALSO
BEEN WORKING IN PARTNERSHIP AND
SUPPORT OF THE OFFICE OF
MINORITY HEALTH HERE AT OASH,
AND WORKING VERY CLOSELY AND
TALKING WITH COMMUNITY HEALTH
WORKERS, HOSTING A SERIES OF
LISTENING SESSIONS AND
ROUNDTABLES TO BETTER UNDERSTAND
HOW THEIR WELL-BEING IS AND
DIFFERENT WAYS THAT DIFFERENT
STAKEHOLDERS CAN SUPPORT THEM
AND SUSTAIN THEIR WORK
ESSENTIALLY, SO WE'RE EXCITED
FOR THAT WORK.
SO NEXT, I'LL GO INTO OUR MOST
RECENT PRODUCT, WHICH IS
LAUNCHED THIS PAST AUGUST, JUST
A FEW WEEKS AGO, UNDER THE
WONDERFUL LEADERSHIP WITH THANKS
TO MS. SHORT, DR. MOLDER, AND
DR. NAKASI, WHO ALL TOGETHER
WITH DR. MURTHY AND A BROADER
TEAM OF OTHER DIVISIONS IN OUR
OFFICE, AND ACROSS THE
INTRAAGENCY AND INTERAGENCY HELP
TO PUBLISH THIS ADVISORY, SO
HERE, JUST BOLDED SOME OF THE
MAJOR TOP LINES AND WANTED TO
ACKNOWLEDGE SO MANY OF YOU WHO
ARE AMONG THE 63 MILLION OF
PARENTS WHO ARE LIVING WITH
CHILDREN UNDER AGE 18 IN THE
U.S.
AND MANY MORE ADDITIONAL
CAREGIVERS AS I MENTIONED WHO
ARE THERE IN THE ROOM OR THAT
YOU KNOW WHO HOLD A PRIMARY
RESPONSIBILITY OF CARING FOR
CHILDREN AND AGING PARENTS.
AND ONE OF THE MAIN POINTS THAT
I'LL SHARE THAT HOPEFULLY YOU'VE
BEEN SEEING FROM OUR
COMMUNICATIONS IS HOW NEARLY 48%
OF PARENTS TODAY WHO SAY THAT
MOST OF THEIR STRESS IS
COMPLETELY OVERWHELMING, AND
THIS IS COMPARED TO 26% AMONG
OTHER ADULTS AND OVER THE LAST
DECADE, PARENTS HAVE BEEN
CONSISTENTLY REPORTING HIGH
LEVELS OF STRESS.
STRESS AND FINANCIAL
WORRIES AS THE TOP STRESSOR.
ANOTHER INTERESTING DATA POINT
IS THAT 1 IN 4 U.S. PARENTS
REPORTED MULTIPLE TIMES IN THE
PAST YEAR WHEN THEY DID NOT HAVE
ENOUGH MONEY FOR BASIC NEEDS.
AND SO ULTIMATELY, THE MAIN
MESSAGE IS THAT THE WELL-BEING
OF PARENTS AND CAREGIVERS IS
LINKED TO THE WELL-BEING OF
CHILDREN AND THEIR FAMILIES
AFFECTING THEIR HEALTH, THEIR
LEARNING AND THEIR FUTURES.
A LOT OF THIS POSSIBLY IS NOT
NEW, TO MANY OF YOU EITHER DOING
RESEARCH IN THIS SPACE OR HAVE
BEEN COLLECTING RESEARCH ON THIS
FOR DECADES OR KNOW FROM
PERSONAL EXPERIENCE, BUT IT WAS
WONDERFUL TO PUT IT ALL TOGETHER
UNDER ONE DOCUMENT, ESPECIALLY
NOW, THROUGH THE PANDEMIC, AND
HELP PAVE THE WAY TOGETHER WITH
OTHERS FOR FUTURE IMPACTS ON
POLICY, PROGRAMS AND PRACTICE.
I WANTED TO NOTE IN PARTICULAR
THERE ARE, AS SO MANY OF YOU
KNOW FROM ALL OF THE ADVISORIES,
NOT LIMITED TO THE ONES UNDER
DR. MURTHY'S TENURE THAT THERE
ARE USUALLY RECOMMENDATIONS FOR
ACTION, AND THESE FALL UNDER A
VARIETY OF STAKEHOLDERS
DEPENDING ON PRODUCT.
SO I WANTED TO PROVIDE THE LIST
OF THE KEY STAKEHOLDERS THAT ARE
NAMED HERE, WHICH INCLUDE SO
MANY OF YOU.
THIS IS MORE OF A BROADER LIST,
IF YOU COMPARE TO THE LIST OF
RECOMMENDATIONS FOR ACTIONS, FOR
EXAMPLE, UNDER THE SOCIAL MEDIA
AND YOUTH MENTAL HEALTH
ADVISORY, AS WELL AS COMPARED TO
WHAT WE'LL HEAR FROM NOEL ABOUT
THE RECOMMENDATIONS FOR ACTION
UNDER THE FIREARM VIOLENCE
PREVENTION ADVISORY.
SO HERE AMONG THESE
RECOMMENDATIONS, I WANTED TO
JUST PULL OUT A FEW IF YOU
HAVEN'T HAD A CHANCE TO LOOK AT
IT YET.
MANY OF THEM, AGAIN, YOU KNOW OR
HAVE BEEN TOUCHED BY.
SO ONE IS ESTABLISHING A
NATIONAL PAID FAMILY MEDICAL
LEAVE PROGRAM, AND ENSURING THAT
ALL WORKERS HAVE ACCESS TO PAID
SICK TIME.
ANOTHER ONE IS PROMOTING AND
EXPANDING FUNDING FOR PROGRAMS
THAT SUPPORT BOTH PARENTS AND
CAREGIVERS AS WELL AS THEIR
FAMILIES.
THIS INCLUDES PROGRAMS THAT
YOU'RE ALL AWARE OF IN TERMS OF
HEAD START OR OTHER PROGRAMS
THAT NURTURE HEALTHY FAMILY
DYNAMICS SUCH AS EARLY CHILDHOOD
HOME VISITING PROGRAMS AND
SERVICES LIKE HEALTHY START OR
LIFESPAN RESPITE CARE PROGRAM.
AND THEN FINALLY, I THINK AS WE
SAW EVEN AS OF YESTERDAY, FROM A
RECENT WHITE HOUSE FACT SHEET,
LOOKING AT MENTAL HEALTHCARE
COVERAGE AND ACCESS, IT'S REALLY
ENSURING THAT PARENTS AND
CAREGIVERS HAVE ACCESS TO
COMPREHENSIVE AFFORDABLE AND
AVAILABLE QUALITY MENTAL
HEALTHCARE ACROSS THE COUNTRY.
SO THIS INCLUDES NOT ONLY
STRENGTHENING THE COVERAGE OF
CARE BUT ALSO CONTINUING TO
EXPAND ENROLLMENT, HAVING
PROMOTIONAL EFFORTS AROUND THEM,
ENSURING ADEQUATE PAYMENT FOR
HEALTH SERVICES, LOOKING AT
PARITY LAWS AND INVESTING IN
MODELS THAT CAN BETTER INTEGRATE
MENTAL HEALTH AND PRIMARY CARE,
INCLUDING TELEHEALTH OPTIONS FOR
THIS AS WE SAW WAS UTILIZED
DURING THE PANDEMIC, AS WELL AS
THE OTHER MODEL THAT WE'VE BEEN
HEARING AND SEEING MORE
DEMONSTRATION PROJECTS ON
CERTIFIED BEHAVIORAL HEALTH
CLINICS.
MANY OF YOU KNOW MORE INTIMATELY
BY CCHBCs IN THAT SPACE.
AND WITH THAT, I'LL TURN IT OVER
TO NOEL FROM OUR TEAM.
>> THANKS SO MUCH, JEANNE.
SORRY, EVERYONE, IN ADVANCE.
I HAVE SOME KIND OF CONGESTION
GOING ON SO MY VOICE IS A LITTLE
SOFT.
SO MOVING ON TO THE RECENTLY
PUBLISHED FIREARM VIOLENCE
ADVISORY FROM OUR OFFICE,
EARLIER THIS SUMMER THE SURGEON
GENERAL DECLARED FIREARM
VIOLENCE TO BE A PUBLIC HEALTH
CRISIS.
THIS IS THE FIRST EVER
PUBLICATION FROM THE OFFICE OF
THE SURGEON GENERAL DEDICATED TO
THIS ISSUE, AND IT DESCRIBED THE
PUBLIC HEALTH CRISIS OF FIREARM
VIOLENCE IN AMERICA, LENDS A
FOCUS ON HOW IT AFFECTS
CHILDREN, ADOLESCENTS AND
COMMUNITIES, AND OUTLINES PUBLIC
HEALTH STRATEGIES FOR FIREARM
INJURY AND VIOLENCE PREVENTION
AND REDUCTION.
SO TODAY I'LL JUST GIVE A VERY
ABBREVIATED OVERVIEW OF CONTENT
OF THE ADVISORY, INCLUDING THE
DATA AND THE PUBLIC HEALTH
APPROACH TO FIREARM VIOLENCE
PREVENTION.
SO DIVING RIGHT IN TO THE EXTENT
OF THE PROBLEM, MORE THAN HALF
OF U.S. ADULTS OR 54% REPORT
THAT THEY OR A FAMILY MEMBER
HAVE EXPERIENCED A
FIREARM-RELATED INCIDENT IN
THEIR LIVES.
AND THIS COULD BE BEING
THREATENED PERSONALLY WITH A
FIREARM, HAVING A FAMILY MEMBER
WHO WAS KILLED, WITNESSING A
SHOOTING, FIRING A GUN IN
SELF-DEFENSE, OR HAVING BEEN
INJURED THEMSELVES.
WHILE FIREARM VIOLENCE CAN
AFFECT ANYONE, IT HAS A
DISPROPORTIONATE IMPACT ON
CERTAIN GROUPS WHICH WE'LL
DISCUSS A LITTLE BIT MORE IN
DETAIL LATER ON.
WHAT'S ALSO GROWING IS THE
PARTICULARLY DEVASTATING IMPACT
ON CHILDREN AND ADOLESCENTS.
AS YOU CAN SEE ON THE LEFT,
FIREARM DEATHS HAVE OVERTAKEN
CAR ACCIDENTS AS THE LEADING
CAUSE OF DEATH FOR CHILDREN AND
ADOLESCENTS IN AMERICA.
THE THREAT AND EFFECT OF FIREARM
VIOLENCE NEGATIVELY AFFECT
PEOPLE'S MENTAL HEALTH AND ONE
NATIONALLY REPRESENTATIVE SURVEY
FOUND THAT HALF OR 51% OF 14 TO
17-YEAR-OLDS IN THE U.S. WORRY
ABOUT SCHOOL SHOOTINGS, AND
NEARLY 6 IN 10 REPORT THAT THEY
HAVE RECENTLY THOUGHT ABOUT WHAT
WOULD HAPPEN IF A PERSON WITH A
GUN ENTERED THEIR SCHOOL OR A
SCHOOL NEARBY.
AS YOU CAN SEE ON THE RIGHT, THE
RATE OF FIREARM-RELATED DEATHS
AMONG CHILDREN AND ADOLESCENTS
IN THE UNITED STATES WAS
SIGNIFICANTLY HIGHER COMPARED TO
28 OTHER HIGH-INCOME NATIONS.
WITHIN THE U.S., THERE ARE ALSO
DISPROPORTIONATE IMPACTS FROM
FIREARM VIOLENCE BY RACE AND
ETHNICITY AND FOR OTHER GROUPS.
IN 2022, BLACK INDIVIDUALS
CONTINUED TO ENDURE THE HIGHEST
FIREARM HOMICIDE RATE, WHEREAS
FIREARM SUICIDE RATES WERE
HIGHEST AMONG OLDER WHITE
INDIVIDUALS AND YOUNGER AMERICAN
INDIAN AND ALASKA NATIVE
INDIVIDUALS.
THERE'S INCREASING EVIDENCE THAT
EXPOSURE TO FIREARM VIOLENCE IS
CONTRIBUTE TO ELEVATED STRESS
LEVELS AND MENTAL HEALTH
CHALLENGES AND THEY 10 THE SENSE
OF WELL-BEING FOR ENTIRE
COMMUNITIES.
SO AS SHOWN IN THIS GRAPHIC, GUY
ARM VIOLENCE CAN LEAD TO
CASCADING HARM AND COLLECTIVE
TRAUMA ACROSS SOCIETY, WHICH
WARRANTS HEIGHTENED ATTENTION.
FAMILY MEMBERS OF SURVIVORS, FOR
EXAMPLE, MAY EXPERIENCE
INCREASED RISK OF MENTAL HEALTH
CHALLENGES, INCLUDING ANXIETY,
MOOD DISORDERS, PSYCHOSIS AND
OTHER DISORDERS.
FEAR AND WORRIES ABOUT FIREARM
VIOLENCE ARE HIGHLY PREVALENT
AMONG YOUTH, ESPECIALLY
REGARDING SCHOOL SHOOTINGS.
FOR BROADER COMMUNITIES, HIGH
LEVELS OF EXPOSURE TO FIREARM
VIOLENCE HAVE A NEGATIVE IMPACT
ON THE PUBLIC'S PERCEPTION OF
SAFETY.
ONE INTERESTING DATA POINT THAT
CAME OUT OF THIS WAS THAT NEARLY
6 IN 10 U.S. ADULTS SAY THEY
WORRY SOMETIMES, ALMOST EVERY
DAY OR EVERY DAY, ABOUT A LOVED
ONE BEING A VICTIM OF FIREARM
VIOLENCE.
AND WHILE MASS SHOOTINGS
REPRESENT ONLY ABOUT 1% OF ALL
GUY ARM-RELFIREARM DEATHS IN TH%
REPORT EXPERIENCING STRESS FROM
THE POSSIBILITY OF A MASS
SHOOTING, AND ABOUT 1 IN 3 SAY
FEAR PREVENTS THEM FROM GOING TO
CERTAIN PLACES OR EVENTS.
THE FACTORS STRONGLY ASSOCIATED
WITH FIREARM-RELATED DEATH AND
INJURIES IN THE U.S. ARE VERY
COMPLEX, AND THIS ADVISORY
DESCRIBES HOW SOCIOECONOMIC,
GEOGRAPHIC, AND RACIAL
INEQUITIES, AS WELL AS THE LINKS
BETWEEN THESE FACTORS MAY
CONTRIBUTE TO FIREARM VIOLENCE
OUTCOMES AND EXPOSURE.
IT ALSO DISCUSSES HOW LETHALITY,
AVAILABILITY AND ACCESS TO
FIREARMS ALSO CONTRIBUTE TO THE
PUBLIC HEALTH CRISIS.
SO ONCE THE DATA IS ALL LAID OUT
IN THE ADVISORY, IT CALLS FOR A
PUBLIC HEALTH APPROACH TO
PREVENT AND REDUCE THE HARM
CAUSED BY THE CRISIS.
AND WHEN WE SAY PUBLIC HEALTH
APPROACH -- PREVENTION, THE
ADVISORY DESCRIBES A FOUR-STEP
PROCESS ROOTED IN SYSTEMIC -- OR
IN SYSTEMATIC AND SCIENTIFIC
METHOD.
SO THOSE FOUR STEPS, ONE, THE
PROBLEM MUST BE IDENTIFIED AND
MONITORED.
TWO, THE RISK IN PROTECTIVE
FACTORS MUST BE IDENTIFIED.
THREE, PREVENTION STRATEGIES
MUST BE DEVELOPED AND TESTED TO
DETERMINE THEIR EFFECTIVENESS,
AND FOUR, WIDESPREAD ADOPTION
MUST BE ENSURED THROUGH
IMPLEMENTATION AND DISSEMINATION
OF EFFECTIVE STRATEGIES.
SO BUILDING ON EARLIER SECTIONS
OF THE ADVISORY, WHICH DEFINE
THE PROBLEM AND IDENTIFY THE
RISK AND PROTECTIVE FACTORS, THE
PUBLIC HEALTH APPROACH SECTION
OF THE ADVISORY DESCRIBES KEY
COMPONENTS, AND THIS IS A BIT
DIFFERENT THAN OUR OTHER
ADVISORIES, WHERE WE DON'T
SPECIFICALLY CALL OUT KEY
STAKEHOLDERS.
THE FOUR THINGS WE DO CALL OUT
ARE THE NEED FOR CRITICAL
RESEARCH INVESTMENTS, AN
OVERVIEW OF PREVENTION
STRATEGIES, BOTH THOSE THAT
INVOLVE COMMUNITY RISK REDUCTION
AND EDUCATION, AND THOSE THAT
INVOLVE GUY ARM RISK REDUCTION.
FIREARM RISK REDUCTION.I KNOW WN
TIME SO I WON'T GO INTO SPECIFIC
DETAILS OF ALL OF THE STRATEGIES
LAID OUT, BUT I'LL SEND IT BACK
TO JEANE FOR ANY QUESTIONS.
>> THANK YOU, MS. GARCIA-DAVIS
AND MS. HURADA FOR THAT TIMELY
AND IMPORTANT REPORT.
AND I'M GOING TO OPEN IT UP TO
QUESTIONS AROUND THE ROOM.
>> I HAVE A GENERAL QUESTION.
HI, THANKS FOR THE PRESENTATION.
I'M WONDERING WHETHER THERE ARE
BUILT-IN EVALUATIONS INTO THESE
REPORTS AND RECOMMENDATIONS IN A
GENERAL SENSE, NOT NECESSARILY
THIS PARTICULAR ONE.
>> THANK YOU SO MUCH.
I CAN'T SEE YOU TO ACKNOWLEDGE
YOU BY NAME BUT WE APPRECIATE
THE QUESTION.
IT'S AN IMPORTANT ONE,
ESPECIALLY FOR ME AS I HAVE
WORKED SO MUCH ON MONITORING
EVALUATION THROUGHOUT MY CAREER.
OBVIOUSLY WE DON'T HAVE ANY
BUILT-IN EVALUATIONS TO LOOK AT
THE VARIOUS POLICY AND PROGRAM
KIND OF -- THE OUTPUTS, THE
OUTCOMES AND KIND OF THE IMPACTS
LONG TERM, BUT WE'RE HOPEFUL
THAT -- EVERY YEAR WE DO KIND OF
A STOCK-TAKING WITHIN OUR OFFICE
TO REFLECT AND LOOK AT THE
CHANGES AND FOR THIS YEAR, IT IS
SOMETHING THAT WE ARE TALKING
ABOUT AS PART OF A CLOSEOUT OF
THE LAST FOUR YEARS IN ALL OF
THESE PRODUCTS BECAUSE THERE
HAVE BEEN SO MANY, BUT IF YOU DO
HAVE IDEAS OR WAYS THAT IF THERE
ARE OTHERS THAT ARE INTERESTED
IN WORKING ON THIS, I THINK IT'S
DEFINITELY AN IMPORTANT QUESTION
TO REALLY SEE WHETHER IT'S FROM
THE FIRST ADVISORY CONFRONTING
HEALTH MISINFORMATION, OR EVEN
JUST LOOKING AT THE VERY FIRST
AS WE KNOW THE SURGEON GENERAL'S
REPORT ON SMOKING AND HEALTH 50
OR 60 YEARS AGO, THERE ARE
DEFINITELY GENERATIONAL IMPACTS
ON BOTH THE QUANTITATIVE AND
QUALITATIVE SIDE THAT WE CAN
MEASURE, BUT ALL THAT TO SAY
THAT WE DON'T HAVE ANYTHING
BUILT IN, BUT IT IS DEFINITELY
ONE THAT WE'RE ALWAYS REALLY
TRYING TO LOOK AT INTERNALLY AS
A TEAM WITHIN OUR OFFICE, BUT
IT'S DEFINITELY SOMETHING WE CAN
TAKE TO THE BROADER
CONVERSATIONS WE'RE HAVING
WITHIN OASH AS WELL.
>> THANK YOU.
>> THANK YOU SO MUCH FOR THE
QUESTION.
>> THANK YOU, MS. GARCIA-DAVIS.
>> I HAVE A QUESTION ABOUT
THE -- [INAUDIBLE] I'M WONDERING
IF -- FACTORS SUCH AS ACCESS TO
CHILD CARE HAS BEEN CONSIDERED
IN THAT REPORT, BECAUSE IT COULD
POTENTIALLY BE AN ASSOCIATED
MENTAL HEALTH STRESSOR FOR
PARENTS.
AS MANY OF YOU MAY KNOW OR SOME
OF YOU, CHILD CARE IS SUCH A
HUGE ISSUE IN THE COUNTRY, AND
JUST WONDERING IF -- IN THAT
REPORT.
>> HI.
THANK YOU SO MUCH FOR THAT
QUESTION.
YES, IT WAS DEFINITELY A
CONSIDERATION FACTOR.
I DON'T HAVE THE EXACT SECTION,
BUT I CAN DEFINITELY TALK WITH
YOU AFTER AND THEN CONNECT YOU
WITH THE PARENTS' ADVISORY TEAM
TOO, JUST TO DISCUSS FURTHER IF
YOU'D LIKE, BECAUSE THEY DID
LOOK AT DATA -- I CAN'T RECALL
FROM WHERE RIGHT NOW -- BUT THEY
WERE LOOKING AT A NUMBER OF
DIFFERENT FACTORS, NOT INCLUDING
DEMOGRAPHICS, WHETHER THEY WERE
SINGLE PARENT HOUSEHOLDS WHO
WERE WORKING OR HAD ACCESS TO
CHILD CARE FROM THEIR WORK OR
FROM THEIR SCHOOL, BUT IT WAS A
FACTOR AND I BELIEVE THAT THERE
IS A RECOMMENDATION BUT I DON'T
KNOW IT OFF THE TOP OF MY HEAD,
BUT I CAN DEFINITELY LOOK AT IT
AND HAPPY TO CONNECT WITH YOU
AFTER IF YOU'D LIKE TO SHARE
YOUR EMAIL.
>> THANK YOU.
>> THANKS FOR THAT QUESTION.
>> ANY OTHER QUESTIONS?
>> I HAVE ONE.
SO THIS IS CHRIS FORREST.
THANKS FOR THOSE PRESENTATIONS.
THE LONELINESS REPORT, SOCIAL
CONNECTION, THE WORKER BURNOUT,
JOB DISENGAGEMENT, PARENT
STRESS, THOSE ARE ALL KIND OF
INTERRELATED PROBLEMS, AND I'M
WONDERING HOW THE OFFICE IS
DEALING WITH THE ISSUE ABOUT
INTERRELATIONSHIP PROBLEMS,
INTERSECTIONAL ISSUES SO THAT
SOME MAY BE MORE MULTI-SOLVING.
BECAUSE I WORRY ON FOCUSING ON
SINGLE ISSUES WHEN ACTUALLY
PEOPLE HAVE MULTIPLE ISSUES
GOING ON.
>> THANKS SO MUCH, CHRIS.
IT'S DEFINITELY AN IMPORTANT
QUESTION, AND IT'S ONE THAT
WE'VE DISCUSSED AND I THINK IT'S
WITHIN WHERE WE COULD
STRENGTHEN, I THINK, ACROSS THE
OFFICE AND THROUGH THE YEARS,
NOT LIMITED TO LIKE
INTERSECTIONALITY BUT TO YOUR
POINT ON THE MULTI-SOLVING A LOT
OF THE OVERLAP WITH THE
RECOMMENDATIONS AND IT'S A
COMMENT THAT I CAN TAKE NEXT
TO -- WE HAVE AN ALL-STAFF KIND
OF MEETING NEXT WEEK WHERE WE
ARE GOING TO BE KIND OF LOOKING
AT THIS VERY CLOSELY, BECAUSE
THIS THIS VERY IMPORTANT POINT
HAS COME UP INTERNALLY BUT ALSO
EXTERNALLY IN KIND OF AN
EVALUATION IN SOME WAY IN
TALKING ABOUT OUR WORK.
IT'S DEFINITELY SOMETHING I CAN
COME BACK TO AND I'D LOVE TO
STAY CONNECTED JUST IF YOU HAVE
OTHER IDEAS WHERE YOU'VE SEEN IT
DONE WELL SO WE CAN TAKE THIS
YEAR HOME TO SOME EXTENT WITH
THIS IN MIND, THIS
CONSIDERATION.
SO THANK YOU.
>> JUST A BRIEF FOLLOW-UP, I'M
HAPPY TO -- I DO THINK A KIND OF
INTEGRATION ACROSS REPORTS CAN
BE REALLY POWERFUL BECAUSE THE
REPORTS COME AND GO BUT THEN
COMMON CAUSES REALLY ILLUSTRATES
THIS ISSUE THAT THE
DEVELOPMENTALLY ECOSYSTEMS THAT
PEOPLE ARE GROWING UP IN IN THIS
COUNTRY NEED FUNDAMENTAL CHANGE.
SO I'D LOVE TO SEE MORE
INTEGRATION ACROSS REPORTS.
I THINK REPORTS THEMSELVES STAND
ALONE BEAUTIFULLY, BUT IT WOULD
BE -- TO BRING THEM TOGETHER.
>> ABSOLUTELY.
LET'S DEFINITELY CONNECT.
I CAN SHARE MY EMAIL ADDRESS
TOO, AND IT ALMOST MAKES ME
THINK OF, YOU KNOW, IF THERE'S
OPPORTUNITIES FOR -- MAYBE IF
OTHERS ARE DOING KIND OF NOT
RESEARCH NECESSARILY BUT KIND OF
ARTICLES, YOU KNOW, ON THIS, I
THINK IT WOULD BE AN INTERESTING
POINT OF VIEW, ABSOLUTELY,
BECAUSE I KNOW IT'S SHARED.
>> THANK YOU AGAIN,
MS. GARCIA-DAVIS.
>> THANK YOU SO MUCH FOR HAVING
US AND PLEASE FEEL FREE TO STAY
IN TOUCH.
I CAN SHARE MY EMAIL ADDRESS AND
I LOOK FORWARD TO FOLLOWING UP
WITH A FEW OF YOU IF NOT OTHERS
IN THE FUTURE, AS WE ARE ONE
AMONG MANY.
THANK YOU ALL FOR YOUR SUPPORT
AND ALL YOUR WORK AND WHAT
YOU'RE DOING NOT LIMITED TO
THESE ISSUES BUT SO MANY OTHER
PUBLIC HEALTH PRIORITIES RIGHT
NOW.
>> SO WE'RE GOING TO MOVE ON TO
APPROVING THE MINUTES FOR THE
MAY 14, 2024 MEETING.
THERE'S A COPY IN THAT E-BOOK
STARTING ON PAGE 12.
SO DO I HAVE --
>> -- IN THE SCHOOL OF NURSING,
NOT THE SCHOOL OF MEDICINE.
SO NOT A BIG ISSUE BUT I HAVEN'T
BEEN APPOINTED YET TO THE SCHOOL
OF NURSING.
>> WE'LL NOTE THAT.
SO DO WE HAVE A MOTION AND
SECOND WITH THAT AMENDMENT?
>> SO MOVED.
>> SECOND?
>> SECOND.
>> ALL IN FAVOR?
>> AYE.
>> OKAY.
THE MINUTES ARE APPROVED WITH
THAT AMENDMENT.
THEN WE NEED TO ACKNOWLEDGE THE
FUTURE MEETING DATES.
THEY'RE LISTED IN THE AGENDA AND
THE E-BOOK SO THE WINTER MEETING
WILL BE FEBRUARY 4, 2025, THAT'S
CONFIRMED.
MAY 13TH, 2025 WILL BE THE
SPRING MEETING.
FALL 2025, SEPTEMBER 9 TO 10,
THE WINTER MEETING WILL BE
FEBRUARY 10, 2026, SPRING
MEETING MAY 12, 2026, AND THEN
THE FALL MEETING FOR 2027 WILL
BE SEPTEMBER 15 TO 16.
THAT WILL BE IN PERSON AND, YOU
KNOW, SO THIS IS JUST AN
ACKNOWLEDGMENT OF THESE FUTURE
MEETING DATES.
THERE ARE ALSO MEETINGS OF OTHER
ASSOCIATIONS THAT ARE RELEVANT
TO THE NLM, LIKE THE AAMC COMING
UP IN NOVEMBER IN ATLANTA, THE
AMIA MEETING IN SAN FRANCISCO
NOVEMBER 9TH TO 13TH AND THE MLA
MEETING IN PITTSBURGH NEXT YEAR
AND MILWAUKEE THE YEAR AFTER.
SO BEFORE WE MOVE TO THE
PRESENTATION BY DR. SHERRY, I'D
JUST LIKE TO RE-INTRODUCE
DR. ZHENG, ASSOCIATE PROFESSOR
AT THE CENTER FOR HEALTH
PROFESSIONS EDUCATION AND THE
UNIFORMED SERVICES UNIVERSITY OF
THE HEALTH SCIENCES.
AND SO WE'LL MOVE TO THE REPORT
BY DR. SHERRY.
>> GOOD MORNING.
THANK YOU, DR. OGUNYEMI, AND
APOLOGIES I CANNOT BE THERE IN
PERSON.
I'VE BEEN FIGHTING COVID AND I'M
STILL POSITIVE, SO I THOUGHT
THIS WAS THE BEST I COULD DO FOR
PUBLIC HEALTH, PROTECT YOU ALL.
[LAUGHTER]
SO BEAR WITH ME.
I'M STARTING THE SLIDE SHARE.
I THINK.
ALL RIGHT.
I'M GOING TO TURN OFF MY CAMERA.
I'M EXCITED TO GIVE YOU ALL AN
OPPORTUNITY -- I'M SORRY -- AN
UPDATE THIS MORNING ON THE MANY
INTERESTING THINGS THAT WE HAVE
GOING ON HERE AT NLM.
NLM'S SUCCESS OF COURSE IS
DRIVEN BY OUR DEDICATED
LEADERSHIP TEAM SHOWN HERE AND
I'M THRILLED TO BE JOINED
VIRTUALLY AT LEAST BY THIS
INCREDIBLE GROUP OF LEADERS.
WITH THAT BEING SAID, I HAVE
SOME TRANSITION NEWS TO SHARE.
I'M EXCITED TO ANNOUNCE THAT
SINCE OUR LAST MEETING -- ALSO
KNOWN AS LHNCBC.
DR. FUNG HAS BEEN WITH NLM FOR
OVER 20 YEARS AS DOCTORAL FELLOW
AND STAFF SCIENTIST.
DURING THAT TIME, HE HAS
PUBLISHED HIGH IMPACT RESEARCH
ON COVID-19, LONG COVID, HIV AND
AIDS, ADVERSE DRUG REACTIONS AND
OTHER TOPICS.
HE ALSO DEVELOPED A BIOMEDICAL
TERMINOLOGY PRODUCTS, SUCH AS
SNOMED CT TO ICD10-CM MAPPING,
THE CORE PR PROBLEM LIST SUBSETD
RX TERMS.
I'M ALSO PLEASED TO SHARE THAT
JIM MORK HAS BEEN NAMED NEW
DEPUTY DIRECTOR OF LHNCBC.
HE'S RECENTLY SERVED AS ACTING
DIRECTOR SINCE THE RETIREMENT
THIS LAST DECEMBER, I GUESS, OF
OLIVIER, AND I WANT TO EXTEND MY
SINCERE THANKS TO HIM FOR ALL OF
HIS CONTRIBUTIONS IN THAT ROLE.
THE LHNCBC DEPUTY DIRECTOR IS A
NEWLY CREATED ROLE THAT SHARES
RESPONSIBILITY WITH THE DIRECTOR
FOR OVERALL PROGRAM DEVELOPMENT,
PROGRAM EVALUATION, POLICY
FORMULATION, DIRECTION, AND
COORDINATION OF ALL LISTER HILL
CENTER ACTIVITIES.
JIM BRINGS MORE THAN 26 YEARS OF
EXPERIENCE IN BIOMEDICAL
RESEARCH AND PRODUCTION, PRODUCT
ASSESSMENT, DATA SCIENCE AND
NATURAL LANGUAGE PROCESSING TO
HIS NEW ROLE, AS WELL AS
EXPERTISE IN SPURRING
INNOVATION, BUILDING
RELATIONSHIPS AND CHANGE
MANAGEMENT.
WE CONGRATULATE DR. FUNG AND JIM
MORK ON THEIR NEW ROLES.
NOW I'M VERY PLEASED TO SHARE A
NEW NLM VIDEO THAT REVIEWS THE
FEDERAL DEFINITION OF OPEN
SCIENCE AND DESCRIBES HOW IT CAN
BE BENEFICIAL TO RESEARCHERS IN
BROADER COMMUNITIES.
OUR ACTING DIRECTOR OF NLM'S
OFFICE OF STRATEGIC INITIATIVES,
DR. LISA FEDDERRER, AND OUR DATA
SCIENCE AND OPEN SCIENCE OFFICER
DR. MIRIAM ARE FEATURED IN THE
VIDEO AND TALK ABOUT THE IMPACT
OF NLM'S WORK WITH OPEN SCIENCE.
PLEASE PLAY THE VIDEO.
>> OPEN SCIENCE IS AN UMBRELLA
TERM FOR A RANGE OF SCIENTIFIC
PRACTICES THAT INVOLVE MAKING
THE PRODUCTS AND PROCESSES OF
RESEARCH OPEN.
IT ALLOWS PEOPLE TO HAVE A
BETTER VIEW INTO THAT SCIENTIFIC
PROCESS AND UNDERSTAND HOW IS
THIS INFORMATION COLLECTED, HOW
DID THE SCIENTISTS COME TO THE
CONCLUSION THAT THEY DO IN THEIR
PAPER, BUT IT ALSO GIVES PEOPLE
THE OPPORTUNITY TO RE-USE SOME
OF THOSE THINGS.
>> SO THIS IS THE FIRST TIME
THAT WE HAVE A CONSISTENT
DEFINITION ACROSS ALL OF THE
U.S. GOVERNMENT.
IT IS THE PRINCIPLE AND PRACTICE
OF MAKI MAKING RESEARCH PROCESSD
PRACTICES AVAILABLE TO ALL WHILE
RESPECTING DIVERSE CULTURES,
MAINTAINING SECURITY AND
PRIVACY, AND FOSTERING
COLLABORATIONS, REPRODUCIBILITY,
AND EQUITY.
>> NLM PLAYS A BIG ROLE IN OPEN
SCIENCE THROUGH MAKING THOSE
PRODUCTS OF RESEARCH AVAILABLE.
SO WE HAVE PUBMED CENTRAL, WHICH
IS THE FULL TEXT ARCHIVE OF THE
LITERATURE, WE HAVE MANY
RESOURCES THAT MAKE DATA
AVAILABLE THROUGH NCBI, SO ALL
OF THOSE THINGS ARE REALLY
IMPORTANT BOTH FOR HELPING
RESEARCHERS TO FIND WHERE THEY
CAN GET THIS INFORMATION, BUT
ALSO FOR RESEARCHERS WHO ARE
INTERESTED IN PARTICIPATING IN
OPEN SCIENCE AND MAKING THEIR
WORK AVAILABLE, THESE ARE REALLY
IMPORTANT RESOURCES AS HERE'S A
PLACE I CAN GO TO PUT MY DATA SO
THAT OTHER PEOPLE CAN HAVE
ACCESS TO IT.
>> THERE'S BEEN AN UNDERSTANDING
OR LIKE AN EXPANSION OF THE WAY
THAT WE THINK ABOUT SORT OF THE
RESEARCH PRODUCTS AND PROCESSES
ENCOMPASSED BY OPEN SCIENCE, SO
THAT WE SHOULD BE THINKING ALSO
ABOUT SORT OF NEW WAYS OF
DISSEMINATING INFORMATION LIKE
PREPRINTS, OR THINKING ABOUT THE
WAYS IN WHICH WE ENGAGE WITH
DIFFERENT COMMUNITIES AND HOW --
AND RESEARCHERS ENGAGING WITH
COMMUNITIES AND COMMUNITIES
FINDING ON-RAMPS TO FEEL A PART
OF THE SCIENTIFIC PROCESS.
>> THANK YOU VERY MUCH,
DR. FEDDERER AND DR. ZURANKULUM.
NLM LOOKS FORWARD TO OUR
DEDICATION TO OPEN SCIENCE AND
ALL THE CHALLENGES THAT WILL
COME WITH IT AS WE EMBARK ON A
JOURNEY OF FEDERATION AND GROWTH
IN THIS AREA.
NEXT I'D LIKE TO GIVE SOME
UPDATES ABOUT NLM'S COMMITMENT
TO INNOVATION.
DURING THE LA LAST BOARD OF REGS
MEETING I SHARED THE WORK
STREAMS WE ARE USING TO BUILD
THE NLM PROGRAM, GOVERNANCE AND
MANAGEMENT, IDEA LIFECYCLE,
DEPLOYMENT -- AND ORGANIZATIONAL
READINESS.
I'M HAPPY TO SHARE TODAY THAT
ALL OF THE WORK STREAMS HAVE
ACHIEVED THEIR OUTCOMES --
>> DR. SHERRY, SORRY TO
INTERRUPT, WE NEED YOU TO
RE-SHARE.
>> OKAY.
>> SORRY ABOUT THAT.
>> SORRY ABOUT THAT, GUYS.
SO AS I WAS JUST SAYING ABOUT
OUR COMMITMENT TO INNOVATION
HERE AT NLM, WE'VE HAD FOUR
DISTINCT WORK STREAMS SHOWN HERE
ON THE RIGHT THAT WE ARE USING
TO BUILD OUR PROGRAM, GOVERNANCE
AND MANAGEMENT, IDEA LIFECYCLE,
DEPLOYMENT AND MEASUREMENT AND
THE ORGANIZATIONAL READINESS,
AND THAT IS ALL CONDENSED INTO
THAT GREEN SLIDE YOU SEE OR THE
GREEN QUARTER, WHICH THEN
CONNECTS WITH THE OTHER PARTS OF
NLM'S STRATEGIC PLANNING.
THE STRATEGIC PLAN, DIGITAL
TRANSFORMATION, EXPERIENCING
GROWTH.
I'M HAPPY TO SHARE THAT ALL THE
WORK STREAMS WITHIN THE
INNOVATION WORK PROGRAM HAVE
ACHIEVED THEIR OUTCOMES AND THE
PROGRAM IS GOING TO LAUNCH IN A
COUPLE OF WEEKS, ON THURSDAY,
SEPTEMBER 26TH.
THE INNOVATION PROGRAM IS GOING
TO EMPOWER STAFF TO SUBMIT NOVEL
IDEAS FOR ADDRESSING DIFFICULT
PROBLEMS FOR SEIZING NEW
OPPORTUNITIES.
IT'S GOING TO ALLOW THEM TO
SHOWCASE THEIR SOLUTIONS ACROSS
NLM, AND ASSIST THEM IN MAKING
THEIR MARK IN HOW NLM
CONTRIBUTES SIGNIFICANT VALUE TO
OUR RESEARCH MISSION.
THIS NEW PROGRAM REPRESENTS OUR
COMMITMENT TO PRIORITIZING
NLM-WIDE PURSUITS THAT TRANSFORM
THE WAY WE WORK TO MEET THE
DIRECTOR OF NIH'S VISION AND THE
FUTURE NEEDS OF OUR BIOMEDICAL
COMMUNITY.
WHILE BUILDING THIS PROGRAM
ALONG WITH CREATING AN
INCLUSIVE, REPEATABLE AND
CONSISTENT PROCESS ACROSS OUR
NLM DIVISIONS, OFFICES AND
CENTERS, WE ALSO WANT TO ENSURE
THAT NLM STAFF RECEIVE THE
NECESSARY SUPPORT TO BRAINSTORM
NEW POSSIBILITIES AND SOLUTIONS,
TO CONNECT WITH SUBJECT MATTER
EXPERTS WITHIN OUR TALENTED
STAFF, AND TO CLEARLY DEFINE THE
NEXT STEPS NECESSARY TO BRING
NEW IDEAS TO LIFE.
AS YOU CAN SEE, THE NEW
INNOVATION PROGRAM PROCESS
BEGINS WITH AN INNOVATION OWNER
SUBMITTING THEIR IDEA TO SOLVE A
PROBLEM OR SEIZE AN OPPORTUNITY
FOR A PERSON WITH A PROBLEM,
SOLUTION OR OPPORTUNITY TO
SEIZE.
AN INNOVATION FACILITATOR THEN
RECEIVES THE IDEA AND SERVES AS
THE INITIAL DECISION-MAKER AS TO
WHETHER AN IDEA MEETS THE
THRESHOLD TO BECOME A REAL
INNOVATION.
IF IT DOES, THE FACILITATOR WILL
SERVE AS A GUIDING PARTNER TO
THE INNOVATION OWNER THROUGH
PROPOSAL PREPARATION AND
TEAM-BUILDING.
THIS INNOVATION FACILITATOR IS
CURRENTLY A 12-MONTH PART-TIME
DETAIL ROLE HERE AT NLM, AND I'M
EXCITED TO SHARE WE CURRENTLY
HAVE OUR FIRST COHORT OF 19
INNOVATION FACILITATORS GOING
THROUGH WHAT WE'RE CALLING BOOT
CAMP, WHERE THEY'RE LEARNING
ABOUT INNOVATION PRINCIPLES,
CREATIVITY AND IDEATION,
CRITICAL THINKING,
COLLABORATION, LEADERSHIP AND
INITIATIVE AND PROJECT
MANAGEMENT.
SO IT'S A VERY COMPREHENSIVE
TRAINING PROGRAM TO HELP BUILD A
LEADERSHIP FRAMEWORK AROUND
INNOVATION AS AN ENTERPRISE
ACTIVITY.
THIS INNOVATION PROGRAM BOARD
WILL INCLUDE TWO CO-CHAIRS, SIX
VOTING MEMBERS AND TWO
NON-VOTING MEMBERS.
THE BOARD WILL EVALUATE THE
IDEAS TO DETERMINE IF INNOVATION
TEAMS SHOULD BE ASE ASSEMBLED,
FUNDING ALLOCATED AND READY TO
LAUNCH.
THEY'LL OFFER GUY DENSE TO THE
OWNER ACROSS THE PHASES OF NEEDS
IDENTIFICATION, PROPOSAL
DEVELOPMENT, DESIGNING AND
BUILDING TESTS OF NEW CONCEPTS.
ON THURSDAY, SEPTEMBER 26TH, NLM
WILL LAUNCH OUR INNOVATION
PROGRAM.
AT THE LAUNCH EVENT WE WILL
INTRODUCE OUR NEW INNOVATION
FACILITATORS AS A CLASS AND
COHORT AND WE'LL INTRODUCE THE
INNOVATION PROGRAM BOARD AND
BEGIN TO COLLECT NEW IDEAS THAT
WILL SHAPE AND TRANSFORM OUR
FUTURE OF WORK.
IN FISCAL '25, AND BEYOND, WE
WILL CONTINUE TO EVALUATE THE
PROGRAM TO INFORM FUTURE
REFINEMENTS AND ENHANCEMENTS AS
NECESSARY.
NOW LET'S TAKE A MOMENT TO
UPDATE YOU ON THE NLM BUDGET.
THE FY T 25 PRESIDENT'S BUDGET
INCLUDES A TROAT PROGRAM LEVEL
FOR NIH FOR 51 BILL YONDZ AND OF
THAT AMOUNT, THE REQUEST FOR NLM
IS $526.8 MILLION.
GOOD NEWS IS THAT THIS IS AN
INCREASE OF $29.2 MILLION FROM
OUR FY 24 APPROPRIATION LEVEL.
THE CONGRESSIONAL JUSTIFICATION
OUTLINING THE FY 25 PRESIDENT'S
REQUEST IS AVAILABLE ONLINE.
THE BUDGET FORMULATION WORK IN
SUPPORT OF THE PRESIDENT'S
BUDGET REQUEST HAS BEGUN,
HOWEVER, AT THIS POINT THE
BUDGET FIGURES ARE NOT AVAILABLE
TO THE PUBLIC, AND WE STAND
ALONG WITH YOU WATCHING AS THIS
PROCEEDS THROUGH THE LEGISLATIVE
PROCESS THIS FALL.
NOW I'D LIKE TO PIVOT TO SOME
NEW EXCITING ACCOMPLISHMENTS
ACROSS NLM'S DIVISIONS AND
PROGRAMS, BEGINNING WITH THE
LISTER HILL CENTER'S FSMA
ELECTRONIC HEALTH RECORDS FOR
DATA ABOUT INDIVIDUALS OR AS
WE'RE CALLING IT, FEHRDI.
IN SEPTEMBER 2023, NLM ANNOUNCED
THE LAUNCH OF FEHRDI, WHICH WILL
UNDERPIN SEVERAL NLM PROJECTS
AND INITIATIVES.
SINCE ANNOUNCING THE LAUNCH OF
FEHRDI, THE ENVIRONMENT HAS
EXPANDED TO INCLUDE 11 DATASETS.
SO THIS IS IMPORTANT BECAUSE
THIS IS A FISMA -- AND I'LL TALK
ABOUT THIS A LITTLE BIT LATER,
THE FISMA SECURITY REGULATIONS
AND CONTROLS ARE SET UP TO
PROTECT SENSITIVE, PROTECTED
CONFIDENTIAL OR OTHERWISE
PROTECTED DATASETS.
NLM IS MOVING INTO THIS SPACE
AND THROUGH OUR WORK AROUND
ELECTRONIC HEALTH RECORDS AND
INDIVIDUAL RESEARCH DATASETS, SO
THE FIRST SN 11 HAVE BEEN
SECURELY ESTABLISHED IN THIS
AREA FOR ROBUST AND SECURE
COMPUTATION.
WE ALSO HAVE AN UPDATE FOR THE
CENTER FOR CLINICAL
OBSERVATIONAL INVESTIGATIONS,
ALSO KNOWN AT CCOI.
CCOI IS AN EVOLVING PROJECT
SEEKING TO LOWER BARRIERS TO
FINDING, EVALUATING AND USING
LARGE CLINICAL DATASETS.
LISTER HILL CENTER FOR CBC
LAUNCHED THE CCOI WEBSITE IN MA.
THE WEBSITE SUPPORTS THE MISSION
OF CCOI BY PROVIDING THE PUBLIC
WITH DATASET PROFILES.
DATASET PROFILES ARE DESCRIBING
THE METADATA OF A DATASET AND
THEY'RE COMPRISED OF AN
OVERVIEW, STATISTICS AND COUNT
FOR EACH CLINICAL DATA CENTER.
DATASET.
CURRENTLY WE HAVE FOUR DATASETS
FEATURED ON THE WEB SIGH.
I'M ALSO PLEASE TODAY RECAP A
FEW OF NLM'S RECENT ADVANCEMENTS
IN RESEARCH AND DEVELOPMENT IN
BIOINFORMATICS AND DATA SCIENCE.
THE NLM MALARIA SCREENER PROJECT
IS A COLLABORATION WITH JOHNS
HOPKINS UNIVERSITY TO DEVELOP AA
DISDESKTOP EVALUATION FOR
EVALUATING THE EFFICACY OF
ANTIMALARIAL DRUGS IN RODENT
MALARIA MODELS BY LEVERAGING
IMAGING PROCESSING AND MACHINE
LEARNING.
THIS WORK IS ENABLING LABS TO
HAVE THE ENHANCED CAPABILITY TO
EVALUATE VACCINE CANDIDATES.
ALSO AS A NEW PROJECT,
INTELLIGENT UNIFIED MEDICAL
LANGUAGE SYSTEM EDITING
ASSISTANCE HELPS UNLS EDITORS
FIND MATCHES AMONG 3 MILLION
UMLS CONCEPTS FOR THE OVER
100,000 NEW TERMS THAT ARE ADDED
TO THE SYSTEM EVERY SIX MONTHS.
SIX MONTHS, RATHER.
THIS IS DONE BY APPLYING DEEP
LEARNING TECHNIQUES TO QUICKLY
FIND MATCHES BETWEEN NEW TERMS
AND EXISTING CONCEPTS.
REALLY EXPEDITING THE CURE RANGE
OF MOTION PROCESS.
THAT PROJECT IS A TRANS-NLM
COLLABORATION BETWEEN LISTER
HILL, OUR USER SERVICES
COLLECTION, USCD, AND OCCS.
SWITCHING GEARS, IN JUNE THE
NATIONAL CENTER FOR
BIOTECHNOLOGY INFORMATION OR
NCBI PRESENTED A WORKSHOP
ENTITLED CURE RANGE OF MOTION OF
GENOMIC SEQUENCE DATA FOR
DEPOSITION TO A PUBLIC DATA
REPREPOSITORY.
AT THE AFRICA CDC IN THE
ETHIOPIAN CAPITAL.
ATTENDEES TO THIS WORKSHOP
REPRESENTED 20 DIFFERENT AFRICAN
COUNTRIES, EACH WITH VARYING
ROLES CONTRIBUTING TO DATA
PREPARATION AND ENTRY FOR PUBLIC
HEALTH MONITORING INITIATIVES
ACROSS AFRICA.
PARTICIPANTS LEARNED HOW TO USE
NLM AND NCBI TOOLS TO ASSESS AND
PREPARE DATA FOR SUBMISSION TO
THE REPOSITORIES AND GENBANK.
THESE CAN BE USE BID RESEARCHERS
WORLDWIDE TO COMBAT DISEASE.
NCBI HAS PRIORITIZED THE
PROCESSING OF MPOX SEQUENCE
SUBMISSIONS IN -- IN SUPPORT OF
PUBLIC HEALTH.
WORKSHOP ATTENDEES HAVE ALREADY
CONTRIBUTED A SIGNIFICANT NUMBER
OF MPOX SEQUENCE SUBMISSIONS
FROM AFRICA AS PARTICIPATION IN
THIS WORKSHOP, SO GREAT WORK
THERE.
NCBI RECENTLY HOSTED A
SUCCESSFUL WEEK-LONG IN-PERSON
EVENT THAT BROUGHT TOGETHER
SCIENCE EDUCATORS FROM ACROSS
THE UNITED STATES WITH THE GOAL
OF HELPING STUDENTS GRASP
COMPLEX SCIENTIFIC CONCEPTS AND
PREPARE FOR REAL WORLD RESEARCH.
THE BIOWEB SUMMIT 2024 PROVIDED
A DYNAMIC ENVIRONMENT WHERE
EDUCATORS WORKED IN TEAMS TO
DEVELOP INNOVATIVE CURRICULAR
PACKAGES DESIGNED TO ENHANCE
SCIENCE EDUCATION.
THESE PACKAGES INCLUDE LEARNING
OBJECTIVES, COURSE MATERIALS AND
ASSESSMENTS, AND ARE SHARED ON
GITHUB TO MAKE THEM ACCESSIBLE
TO THE BROADER EDUCATION
COMMUNITY.
IT FEATURED INTERACTIVE
WORKSHOPS ON CURRICULAR DESIGN,
TEACHING AND HANDS-ON PRACTICE
WITH TOOLS.
AND A PANEL DISCUSSION ON ACTIVE
LEARNING STRATEGIES LED BY
EXPERTS FROM LEADING
INSTITUTIONS SUCH AS NHGRI, THE
NATIONAL HUMAN GENOME RESEARCH
INSTITUTE, THE NATIONAL SCIENCE
FOUNDATION, VIRGINIA TECH
UNIVERSITY, AND HOOD COLLEGE.
PARTICIPANTS CREATED DATA-DRIVEN
ACTIVE LEARNING EXERCISES, AND
THE WEEK CONCLUDED WITH TEAMS
PRESENTING THEIR WORK TO THEIR
PEERS, NIH STAFF AND THE
SCIENTIFIC EDUCATION COMMUNITY.
SHOWCASING INNOVATIVE TOOLS AND
STRATEGIES THAT WERE DEVELOPED
THROUGHOUT THE WEEK.
I'M ALSO PLEASED TO SHARE SOME
EXCITING NEWS ABOUT PUBMED
CENTRAL, ALSO KNOWN AT PMC.
PMC IS A FREE FULL-TEXT ARCHIVE
OF BIOMEDICAL AND LIFE SCIENCE
JOURNAL ARTICLES THAT HAS
REACHED THE 10 MILLION ARTICLE
MILESTONE.
FOR CONTEXT, 10 YEARS AGO, WE
WERE CELEBRATING 3 MILLION
ARTICLES.
SO THERE HAS BEEN NOTABLE GROWTH
AND THAT'S MOST EXCITING, AS
THESE FULL TEXT ARTICLES DRIVE
OPEN ACCESS INNOVATION, OPEN
SCIENCE AS WE JUST LEARNED
ABOUT, TRAINING IN A.I. AND MANY
OTHER EXCITING FIELDS.
IT INCLUDES MILLIONS OF OPEN
ACCESS ARTICLES AVAILABLE UNDER
A CREATIVE COMMONS LICENSE OR
SIMILARLY OPEN TERMS.
THE SUBSET IS AVAILABLE FOR BULK
DOWNLOAD AND DRIVING ADVANCES IN
GENERATIVE A.I.
IN 2024, PMC BEGAN UPDATING THE
TECHNOLOGY BEHIND ITS PUBLIC
WEBSITE USING CLOUD SERVICES TO
IMPROVE THE USER EXPERIENCE,
IMPROVE RELIABILITY AND
SUSTAINABILITY.
EARLIER THIS YEAR, WE OFFERED A
PUBLIC PREVIEW OF UPCOMING
CHANGES FOR USER TESTING AND
FEEDBACK.
THESE CHANGES INCLUDE AN UPDATED
LOOK AND FEEL FOR ARTICLES,
INCLUDING ACCESSIBILITY AND
READABILITY OF CONTENT, IMPROVED
ARTICLE NAVIGATION, AND A NEW
JOURNALIST DISPLAY.
THE PREVIEW VERSION OF THE
WEBSITE WILL BECOME THE DEFAULT
FOR PMC NEXT MONTH, IN OCTOBER.
NOW FOR AN UPDATE ABOUT NLM'S
COMPARATIVE GENOMICS RESOURCE,
OR CGR.
CGR OFFERS AN INTEGRATED TOOLKIT
OF DATA AND ANALYSIS TOOLS FOR
THE STUDY OF EUKARYOTIC
ORGANISMS ACROSS THE TREE OF
LIFE.
TWO RECENT ENHANCEMENTS INCLUDES
OPTIMIZED BLAST DATABASES AND
NCBI DATASETS.
BLAST IS NLM'S FLAGSHIP RESOURCE
FOR SEQUENCE SEARCHES.
THIS IS A TONGUE TIER.
FOR A MORE COMPACT AND EFFICIENT
SOURCE.
BLAST IS USE BID THOUSANDS OF
STUDENTS, RESEARCHERS AND PUBLIC
HEALTH SCIENTISTS DAILY TO HELP
THEM IDENTIFY SEQUENCES AS THEY
WORK AND PLACE THEM IN THE
CONTEXT OF THE TREE OF LIFE.
CORE NT IS THE NAME OF THE NEW
DATABASE, AND IT ENABLES FASTER
SEARCHES AND SEARCH RETURNS
SIMILAR TOP RESULTS FOR MOST
SEARCHES WHILE REDUCING
REDUNDANCY IN SEARCHES FOR SOME
HIGHLY REPRESENTED ORGANISMS.
THOSE DOWNLOADING OUR DATABASES
CAN RUN STANDALONE BLAST.
IT REQUIRES LESS STORAGE SPACE.
NCBI DATASETS, WHICH ARE NOW
PUBLISHED IN NATURE SCIENTIFIC
DATA, HAS MODERNIZED HOW USERS
ACCESS AND DOWNLOAD GENOME
TAXONOMY AND GENE INFORMATION
FROM THE WEB, VIA THE COMMAND
LINE OR THROUGH OPEN API.
NCBI DATASETS REPLACES THE LEG
SATISFY GENOME -- SOURCES
RETIERED -- HOWEVER THERE'S NO
CHANGE TO HOW USERS
PROGRAMMATICALLY ACCESS THE DATA
USING E-UTILITIES OR E-DIRECT.
NOW FOR AN UPDATE FROM OUR
OFFICE OF STRATEGIC INITIATIVES
OR OSI.
OSI HOSTED A TWO-DAY WORKSHOP ON
ADVANCING A NETWORKED APPROACH
FOR EQUITABLE OPEN SCIENCE,
INVITING 20 PARTICIPANTS TO
LEARN HOW NLM LEVERAGES ITS
POSITION TO SUSTAINABLY PROMOTE
EQUITABLE AND MEANINGFUL ACCESS
TO NIH-FUNDED RESEARCH FOR
DIVERSE COMMUNITIES OF END
USERS.
THIS WORKSHOP BROUGHT TOGETHER
OPEN SCIENCE AND KNOWLEDGE
TRANSLATION PRACTITIONERS WHO
ORDINARILY MIGHT NOT HAVE MET,
AND NLM IS WORKING TO CREATE
OPPORTUNITIES TO BUILD ON THE
MOMENTUM CREATED DURING THAT
WORKSHOP.
ALREADY WE'VE HEARD ABOUT A
RESOURCE FOR JOURNALISTS THAT'S
UNDER DEVELOPMENT FROM TWO OF
THE WORKSHOP -- FOCUSED OP OPEN
SCIENCE.
ALSO LAST MONTH THE COORDINATING
COMMITTEE HEARD PRESENTATIONS
FROM TWO OF OUR WORKSHOP
ATTENDEES ON STRATEGIES TO
ENGAGE AND EMPOWER COMMUNITIES
THROUGH OPEN SCIENCE, AND A
WORKSHOP REPORT IS CURRENTLY
UNDER DEVELOPMENT AND SHOULD BE
RELEASED LATER THIS FALL.
ALSO IN JUNE, OUR DIVISION OF
EXTRAMURAL PROGRAMS KNOWN AS EP
HOSTED A WORKSHOP THAT FOCUSED
ON USING A.I. TO IMPROVE HEALTH
EQUITY.
ATTENDEES INCLUDED 52
PARTICIPANTS FROM VARIOUS
SECTORS INCLUDING ACADEMIA,
CLINICAL, INDUSTRY AND
GOVERNMENT.
THE MAIN GOALS OF THE WORKSHOP
WERE TO FOSTER AND ENCOURAGE
INTERDISCIPLINARY DISCUSSIONS
AND COLLABORATIONS AMONG HEALTH
EQUITY AND A.I. RESEARCHERS, AND
IDENTIFY NEW AREAS OF STRATEGIC
INVESTMENT FOR NLM AND HEALTH
DISPARITIES RESEARCH.
EP PLANS TO DEVELOP FUNDING
OPPORTUNITIES BASED ON THE GAPS
IN FUTURE DIRECTS DISCUSSED IN
THIS WORKSHOP.
EP WILL ALSO BE HOSTING ANOTHER
WEBINAR COMING UP ON
SEPTEMBER 18TH.
THIS VIRTUAL EVENT IS A UNIQUE
OPPORTUNITY FOR DATA SCIENTISTS,
RESEARCHERS, TECHNOLOGISTS AND
THOSE CURIOUS ABOUT NLM-FUNDED
RESEARCH TO DELVE INTO THE
COLLABORATIVE STRATEGIES FOR
CREATING HIGH QUALITY DATASETS,
REDUCING EXPERT BURDEN THROUGH
INNOVATIVE DATA PROCESSING
TECHNIQUES AND FOSTERING
COMMUNITY ENGAGEMENT AND
COLLABORATION.
THREE NLM-FUNDED RESEARCHERS
WILL PRESENT ON THEIR WORK, EACH
HARNESSING THE POWER OF MACHINE
LEARNING AND A.I. TO OVERCOME
SIGNIFICANT CHALLENGES IN DATA
ACCESSIBILITY.
PRESENTER ALSO SHARE THE LATEST
DEVELOPMENTS IN THESE AREAS AND
STIMULATE DISCUSSIONS ON HOW
SHARED METHODOLOGIES CAN BE
APPLIED ACROSS DOMAINS TO EXPAND
DATA AVAILABILITY FOR HEALTH
RESEARCH.
I'M PLEASED TO RENOUNCE THAT A
RECIPIENT WAS PRESENTED WITH THE
WEST BOOK IN URBAN AFFAIRS AWARD
BY THE URBAN AFFAIRS ASSOCIATION
FOR HER BOOK, WHITE BURGERS,
BLACK CASH, FAST FOOD FROM BLACK
EXCLUSION TO EXPLOITATION.
THIS WORK PROVIDES A DETAILED
HISTORY OF RACE AND THE FOOD
ENVIRONMENT AND ITS IMPACT ON
NUTRITION AND DISPARITIES.
CONGRATULATIONS TO DR. KWATE.
IN JUNE, NLM CONDUCTED A
YEAR-LONG SYSTEM REALIGNMENT.
THE GOAL WAS TO ESTABLISH
AUTHORIZATION BOUNDARIES SO THAT
INFORMATION SECURITY RISK COULD
BE BETTER UNDERSTOOD AND ALIGNED
WITH NLM'S MISSION AND BUSINESS
OBJECTIVES AS WELL AS NIH
SECURITY COMPLIANCE
REQUIREMENTS.
PRIOR TO THE SYSTEM REALIGNMENT
WHICH RESULTED IN THREE
AUTHORIZATION BOUNDARIES, NLM
HAD SIMPLY ONE AUTHORIZATION
BOUNDARY AROUND EVERYTHING WE
DO.
THIS TRANSFORMATION ENABLES A
BETTER UNDERSTANDING OF OUR
CYBERSECURITY THREATS THAT
FACILE TAILTS RISK-BASED
DECISION-MAKING TAILORED TO
SPECIFIC DIVISION GOALS AND
ENSURES COMPLIANCE WITH NIH
SECURITY REQUIREMENTS.
BY UTILIZING THE NATIONAL
INSTITUTES OF STANDARDS OF
TECHNOLOGY IN RISK MITIGATION
FRAMEWORK GUY DENSE, GUIDANCE -S
ON THE PRINCIPLES OF BUDGET AND
MANAGEMENT AUTHORITY,
SIMILARITIES OF DATA TYPES, AND
SIMILARITIES OF OPERATING
ENVIRONMENTS.
DURING THIS PROJECT, THE
COLLABORATIVE ANALYSIS BETWEEN
OCCS, NCBI AND LHNCBC CREATED IN
CREATING TWO BOUNDARIES AND
INCREASED THE NLM DATA CENTER
FROM A LOW IMPACT SYSTEM TO A
MODERATE IMPACT SYSTEM.
THIS MODERATE IMPACT DESIGNATION
FOR EACH BOUNDARY REPRESENTS THE
SECURITY CONTROL BASELINE THAT'S
USED TO PROTECT THE CON I
CONFIDENTIALITY, INTEGRITY AND
AVAILABILITY REQUIREMENTS OF NLM
INFORMATION SYSTEMS.
OVER A DOZEN SECURITY DOCUMENTS
WERE CREATED OR REVISED.
A THIRD PARTY ASSESSOR TEAM
PERFORMED INDEPENDENT
ASSESSMENTS ON EACH BOUNDARY
TO -- OFFICE OF THE INSPECTOR
GENERAL AUDIT THAT EXAMINES
SYSTEM AND INFORMATION AND
TECHNICAL CONTROLS WITHIN NLM.
IN JANUARY, NLM LAUNCHED THE
BETA VERSION OF THE DATASET
CATALOG.
THE DATASET CATALOG IS A
DISCOVERY TOOL POWERED BY
INNOVATIVE FRAMEWORK DEVELOPED
BY NLM CALLED THE DATASET
METADATA MODEL, OR DATMM.
THAT PROVIDES A COMMON MODEL FOR
DESCRIBING DATA IN BIOMEDICAL
DATASETS AND REPOSITORIES.
WE HAVE THE -- EVALUATION PERIOD
FOR THE KA CATALOG AND THAT WILL
INFORM HOW WE REFINE THIS TOOL.
I ENCOURAGE YOU TO EXPLORE THE
TOOL, SHARE IT WITH YOUR
COLLEAGUES AND YOUR EXTERNAL
NETWORKS AND PROVIDE FEEDBACK BY
USING THE BLUE GIVE FEEDBACK
BUTTON ALONG THE RIGHT SIDE OF
THE WEBSITE.
THIS WILL BE IMPORTANT FOR OUR
STRATEGIC PLANS AND FRAMEWORK
FOR DEVELOPING FEDERATED DATA
ACCESS THROUGH NLM SYSTEMS.
NOW FOR SOME NEWS ABOUT NLM
DIGITAL COLLECTIONS.
FIVE NEWLY DIGITIZED ARCHIVAL
COLLECTIONS ARE NOW AVAILABLE.
THESE ADDITIONS INCLUDE TWO
COLLECTIONS DIGITIZED IN
COLLABORATION WITH ADAM MATTHEW
PUBLISHING AS WELL AS TWO CIVIL
WAR ERA COLLECTIONS POPULAR IN
THE RESEARCH COMMUNITY.
THEY ALSO INCLUDE MORE THAN
26,000 PAGES FROM THE PAPERS OF
DR. STAN -- THE PHYSICIAN,
BACTERIOLOGIST, MEDICAL
HISTORIAN AND ARMY MEDICAL
OFFICER WHO CONTRIBUTED TO THE
1964 SURGEON GENERAL'S ADVISORY
COMMISSION ON SMOKING AND
HEALTH, AND THE U.S. ARMY
SURGEON GENERAL'S ARMED FORCES
EPIDEMIOLOGICAL BOARD.
WE'RE EXCITED TO MAKE THESE
COLLECTIONS AVAILABLE IN DIGITAL
FORM TO RESEARCHERS FROM ALL
DISCIPLINES.
EARLIER THIS YEAR, NLM ACQUIRED
AN INTERACTIVE EXHIBIT PIECE
FROM THE FIVE-PIECE SMITHSONIAN
AND NHGRI COLLABORATION ENTITLED
"GENOME, UNLOCKING LIFE'S CODE."
THE EXHIBITION MOVED TO THE NIH
CAMPUS THIS PAST JUNE AFTER
CLOSING AT THE SMITHSONIAN.
THE OTHER PIECES OF THE EXHIBIT
ARE LOCATED IN THE C WING OF
BUILDING 31 ACROSS CAMPUS, AND
YOU CAN FIND THEM ON FLOORS 2,
3, 4 AND 5.
NOW LOCATED AT NLM IS TITLED
"WHERE IT ALL BEGAN," FOCUS ON
HISTORY, TIMELINE, CHALLENGES
AND ACHIEVEMENTS SURROUNDING THE
HUMAN GENOME PROJECT.
I'M EXCITED TO REPORT THAT THIS
EX-HI PIGS INCLUDES AN OVERSIZED
REPRODUCTION OF ONE OF NLM'S
TREASURED COLLECTION ITEMS,
DR. MARSHAL NUREMBERG'S HANDMADE
GRAPH PAPER WHICH HELPED HIM AND
HIS COLLEAGUES DECIPHER THE
CODONS FOR ALL 20 AMINO ACIDS,
FOR WHICH THEY SHARED THE 1968
NOBEL PRIZE IN PHYSIOLOGY OR
MEDICINE.
IF INTERESTED, BE SURE TO VISIT
THE EXHIBITION IN THE ALCOVE
DIRECTLY BEHIND THE VISITORS
CENTER WHERE THOSE OF US TODAY
ARE MEETING TODAY.
IN MORE EXHIBITION FLUS, I'M
EXCITE TODAY ANNOUNCE THAT NLM'S
VIRTUAL EXHIBITION, "THIS LEAD
IS KILLING US," HISTORY OF
CITIZENS FIGHTING LEAD POISONING
IN THEIR COMMUNITIES, RECEIVED
THE HEALTH AND SAFETY VIRTUAL
EXHIBIT OF THE YEAR AWARD FROM
THE AMERICAN INDUSTRIAL HYGIENE
ASSOCIATION, OR AIHA.
THE EXHIBITION HIGHLIGHTS PAST
AND ONGOING EFFORTS TO PREVENT
LEAD EXPOSURES IN WORKPLACE FROM
TICK-HOME EXPOSURE TO DUMPING IN
LEAD PIPES.
THE MUSEUM AND CULTURAL HERITAGE
WORKING GROUP, THE AWARD
ACKNOWLEDGES THE POWER OF AN
INSTRUCTIVE, VISUALLY APPEALING
VIRTUAL EXHIBIT TO TELL A STORY
ABOUT OCCUPATIONAL AND
ENVIRONMENTAL HEALTH AND SAFETY
ISSUES.
THROUGH THIS AWARD, THE WORKING
GROUP SEEKS TO INSPIRE OTHERS TO
IDENTIFY OR DEVELOP OTHER HEALTH
AND SAFETY-RELATED VIRTUAL
EXHIBITS.
SWITCHING GEARED I'D LIKE TO
MENTION A FEW OF THE EXCITING
NLM FUNDING OPPORTUNITIES.
RECENTLY NLM RELEASED A FUNDING
OPPORTUNITY THAT SOLICITS
RESOURCE GRANT APPLICATIONS FOR
PROJECTS THAT WILL PROVIDE
ACCURATE, USEFUL, USABLE AND
UNDERSTANDABLE HEALTH
INFORMATION TO POPULATIONS THAT
EXPERIENCE HEALTH DISPARITIES IN
THEIR HEALTHCARE PROVIDERS.
THOSE PROJECTS SHOULD EMPHASIZE
DEVELOPMENT AND DEPLOYMENT OF
NEW INFORMATION DEVELOPMENT OR
RESOURCES OR EXPAND OR IMPROVE
EXISTING SERVICE TO MEET DEMANDS
ON POPULATIONS EXPERIENCING
HEALTH DISPARITIES AND TO
PROMOTE HEALTH EQUITY.
IN ADDITION AS MENTIONED IN OUR
MAY BOARD OF REGENTS MEETING,
THE WHITE HOUSE HAS LAUNCHED AN
INITIATIVE ON WOMEN'S HEALTH
RESEARCH.
WITH THIS CALL TO ACTION, NIH
RELEASED A SPECIAL NOTICE OF
INTEREST TO RECEIVE APPLICATIONS
FOCUSED ON DISEASE AND HEALTH
CONDITIONS THAT PREDOMINANTLY
AFFECT WOMEN.
NLM IS SPECIFICALLY INTERESTED
IN RECEIVING APPLICATIONS THAT
LEVERAGE A.I. AND DATA SCIENCE
TO DETECT EARLY SIGNS OF
SEX-SPECIFIC HEALTH CONDITIONS,
DEVELOP PERSONALIZED RISK
ASSESSMENTS AND INTEGRATE
PRECISION MEDICINE TO IMPROVE
OUTCOMES FOR DISEASES
DISPROPORTIONATELY AFFECTING
WOMEN.
NLM HAS ALSO RELEASED A NOTICE
OF INTENT TO PUBLISH A FUNDING
OPPORTUNITY ANNOUNCEMENT FOR
COMPUTATIONAL APPROACHES TO
CURATION AND SCALE -- MEDICAL
RESEARCH ASSETS.
THIS IS A REISSUE AND WE
ANTICIPATE THE ANNOUNCEMENT WILL
BE PUBLISHED LATER THIS YEAR
WITH A FIRST RECEIPT DATE OF --
2025.
NLM IS LOOKING FOR M ACATIONS
THAT DEVELOP NOVEL COMPUTATIONAL
METHODOLOGIES TO ACCOMPLISH
AT-SCALE CURATION FOR ONGOING
DATA-DRIVEN RESEARCH NEEDS FOR A
DIVERSE RANGE OF BIOMEDICAL DATA
ASSETS.
NOW, AS I SHARED PREVIOUSLY, NLM
CONTINUES TO WORK WITH NIH'S
OFFICE OF RESEARCH ON WOMEN'S
HEALTH, ALSO KNOWN AS ORWH, IN
SUPPORT OF THE WHITE HOUSE
INITIATIVE ON WOMEN'S HEALTH TO
DEVELOP A MINIMUM VIABLE PRODUCT
OR MVP OF A NOVEL NIH DISCOVERY
SERVICE FOR WOMEN'S HEALTH
RESEARCH.
THE GOAL OF THE PORTAL IS TO
FACILITATE THE DISCOVERY OF
RESEARCH, INCLUDING RELATED DATA
AND LITERATURE ON ISSUES
PRIMARILY AFFECTING WOMEN.
SUCH AS PREGNANCY, MENOPAUSE,
POLYCYSTIC OVARY SYNDROME, AS
WELL AS TO RESEARCH INTO COMMON
HEALTH ISSUES THAT OFTEN PRESENT
DIFFERENTLY IN WOMEN, SUCH AS
AUTOIMMUNE DISORDERS,
OSTEOPOROSIS AND CARDIOVASCULAR
DISEASE.
THROUGH THIS PORTAL, PATIENTS,
CAREGIVERS, MEDICAL
PROFESSIONALS, RESEARCHERS AND
THE PUBLIC WILL BE ABLE TO
EASILY DISCOVER THE LATEST
FINDINGS IN ONGOING RESEARCH
ACTIVITIES, INCLUDING NIH
SUPPORTED GRANTS, INTRAMURAL
RESEARCH, COMMON DATA ELEMENTS,
LITERATURE, AND RELEVANT DATA ON
TOPICS THAT AFFECT WOMEN'S
HEALTH.
INITIALLY, THE NVP WILL FEATURE
A FEW SELECT TOPICS WITH MORE TO
COME.
IN COLLABORATION WITH ORWH, WE
HOPE TO LAUNCH THE FIRST PHASE
OF THIS PORTAL IN THE COMING
WEEKS.
NOW I WOULD LIKE TO TAKE A FEW
MOMENTS TO DISCUSS THE MEMBERS
WHO HAVE RETIRED OR JOINED NLM
SINCE OUR LAST BOARD MEETING.
OUR STAFF IS THE HEART OF NLM
AND MAKE ALL OF OUR WORK AND
ACCOMPLISHMENTS POSSIBLE.
FIRST I'D LIKE TO ACKNOWLEDGE
PETER COOPER, THE RECENTLY
RETIRED STAFF SCIENTIST FROM
NCBI.
DEURNLG HIS 26 YEARS OF HAVE
EVER, DR. COOPER LED EDUCATION
AND OUTREACH EFFORTS AT NCBI AND
CREATED MULTIPLE IMPACTFUL
EDUCATIONAL MATERIALS FOR NLM.
I ALSO WANT TO ACKNOWLEDGE
MARGARET MCGHEE, CHIEF OF THE
COLLECTION BRANCH IN USCD, WHO
IS RETIRING ON SEPTEMBER 30TH
AFTER MORE THAN 20 YEARS OF
SERVICE AS A LIBRARIAN AT NIH.
MARGARET HAS CONTRIBUTED TO
VARIOUS NLM PRODUCTS AND
SERVICES IN THE NETWORK OFFICE,
THE PRESERVATION AND COLLECTION
MANAGEMENT SECTION, AND THE
PUBLIC SERVICES DIVISION.
WE THANK PETER AND MARGARET FOR
THEIR YEARS OF SERVICE AND THEIR
TREMENDOUS CONTRIBUTIONS TO NLM.
THANK YOU.
I'M ALSO EXCITED TO ANNOUNCE
THAT NLM HAS ADDED SOME NEW KEY
STAFF TO OUR TEAM AS WELL.
WE HAVE WELCOMED THE BRANCH
CHIEF FOR THE APPLIED CLINICAL
INFORMATICS CENTER.
DAVID LANDSMAN WAS APPOINTED
DEPUTY SCIENTIFIC DIRECTOR OF
THE INTRAMURAL RESEARCH PROGRAM.
AN DREEL A CULL HAIN, CHIEF
GRANTS MANAGEMENT OFFICER FOR
NLM, AND RAJA CHOLAN, HEALTH
DATA STANDARDS BRANCH CHIEF IN
THE USER SERVICES AND
COLLECTIONS DIVISION.
CONGRATULATIONS TO YOU ALL.
NLM IS THRILLED TO WELCOME OUR
2024/2025 ASSOCIATES FELLOWS
THIS YEAR.
KATIE KIDWELL, DUFF, SOPHIE NAC,
ERIN SIMON, AND ELI WACHTER.
PLEASE JOIN ME IN CONGRATULATING
EACH OF OUR NEW STAFF MEMBERS
AND ASSOCIATE FELLOWS AT NLM.
CONGRATULATIONS.
NLM IS ALSO HAPPY TO SHARE THAT
LISTER HILL'S -- RECEIVED A 2024
DIRECTOR'S AWARD FOR THE
COVID-19 RESPONSE CATEGORY FOR
HIS WORK AS PART OF THE
RESEARCHING COVID TO ENHANCE
RECOVER KNOWN AS THE RECOVER
TEAM.
PAUL SERVES AS THE SCIENTIFIC
PROGRAM LEAD IN CLINICAL SCIENCE
CORE FOR THE RECOVER INITIATIVE,
SO CONGRATULATIONS TO HIM AS
WELL.
NOW I'D LIKE TO TURN THE
PRESENTATION OVER TO OUR
ASSISTANT DIRECTOR FOR POLICY
DEVELOPMENT, DR. TERESA GABAN,
FOR AN UPDATE ON POLICY AND
LEGISLATION ISSUES AFFECTING
NLM.
>> THANK YOU, STEVE.
GOOD MORNING, EVERYONE.
SO AS STEVE MENTIONED, I'M GOING
TO PROVIDE A BRIEF POLICY AND
LEGISLATIVE UPDATES.
AS ALWAYS I -- THIS WILL BE
INTERESTING.
AS ALWAYS I ENCOURAGE YOU TO
REVIEW THE WRITTEN UPDATE WE
PROVIDE FOR MORE DETAILS.
SO THERE HAVE WITHIN SEVERAL
POLICY ACTIVITIES OF INTEREST TO
NLM.
FIRST OFF, I WANTED TO MENTION
THAT ON JUNE 18TH, NIH RELEASED
THE DRAFT PUBLIC ACCESS POLICY
ALONG WITH DRAFT SUPPLEMENTAL
GUIDANCE FOR PUBLIC COMMENT.
CONSISTENT WITH POLICY GUIDANCE
FROM THE WHITE HOUSE OFFICE OF
SCIENCE AND TECHNOLOGY POLICY.
THE DRAFT POLICY PROPOSES NEW
LANGUAGE TO FACILITATE THE
REMOVAL OF THE ALLOWABLE EMBARGO
PERIOD FOR NIH FUNDED
PUBLICATIONS.
ALL OTHER PROCESSES UNDER THE
CURRENT POLICY WOULD CONTINUE
UNCHANGED.
PUBLIC COMMENTS TO THIS DRAFT
POLICY WERE DUE THROUGH
AUGUST 30TH, AND AS A REMINDER,
NIH'S PLAN IS TO PUBLISH A
FINAL -- POLICY AND REVISE
PUBLIC ACCESS PLAN BY THE END OF
THE CALENDAR YEAR.
SECOND, THERE HAVE BEEN SEVERAL
RELATED POLICY ACTIVITIES WHICH
I'M SURE SOME OF YOU ARE ALREADY
AWARE.
MOST RECENTLY, IN LATE JULY, THE
DEPARTMENT ANNOUNCED THE
REORGANIZATION AND CONSOLIDATION
OF SEVERAL TECHNOLOGY STRATEGY
AND POLICY FUNCTIONS.
IN PARTICULAR, I WANTED TO
HIGHLIGHT THAT THE OFFICE OF THE
NATIONAL COORDINATOR FOR HEALTH
INFORMATION TECHNOLOGY WAS
RENAMED THE ASSISTANT SECRETARY
FOR TECHNOLOGY POLICY AND OFFICE
OF THE NATIONAL COORDINATOR FOR
HEALTH INFORMATION TECHNOLOGY.
OVERSIGHT OVER TECHNOLOGY DATA
AND ARTIFICIAL INTELLIGENCE
POLICY AND STRATEGY FOR THE
DEPARTMENT WAS MOVED FROM THE
ASSISTANT SECRETARY FOR
ADMINISTRATION, INCLUDING
HHS-WIDE ROLES THAT ARE THE
CHIEF TECHNOLOGY OFFICER, CHIEF
DATA OFFICER AND CHIEF A.I.
OFFICER.
IN ADDITION TO THAT, ASTP ONC IS
GOING TO BE REALLY EASY, HAS
RELEASED TWO THINGS THAT I
WANTED TO BRING TO YOUR
ATTENTION OVER THE SUMMER.
THE FINAL VERSION OF FIVE OF THE
U.S. CORE DATA FOR
INTRAOPERABILITY AND INCLUDES
TWO IN DATA ELEMENTS AND 16 NEW
DATA CLASSES.
THE OFFICE IS NOW ACCEPTING
SUBMISSIONS FOR VERSION 6, WHICH
ARE DUE BY THE END OF THIS
MONTH, AND IN ADDITION TO THAT,
IN MID JULY, THAT OFFICE ALSO
RELEASED THE HEALTH DATA
TECHNOLOGY AND INTEROPERABILITY
PATIENT ENGAGEMENT INFORMATION
SHARING AND PUBLIC HEALTH
INTEROPERABILITY OR
HTI2 PROPOSED RULE FOR PUBLIC
COMMENT.
IT INCLUDES A COUPLE OF THINGS I
WANTED TO MENTION, INCLUDING THE
ADOPTION OF U.S. CORE FOR DATA
INTRAOPERABILITY VERSION 4 BY
JANUARY OF 2028.
AND IT PROPOSES TO EXPAND
APPLICATIONS FOR PROGRAMMING
INTERFACE CERTIFICATION AND USE
TO INCLUDE ELECTRONIC PRIOR
AUTHORIZATION, BILLING AND
PAYMENT AND PUBLIC HEALTH
EXCHANGE.
PUBLIC COMMENTS ARE DUE BY
OCTOBER 4TH.
I ENCOURAGE YOU TO TAKE A LOOK
AT THE WEBSITE.
THERE HAVE BEEN A LOT OF
WEBINARS FOR MORE INFORMATION.
AS YOU CAN IMAGINE, WE CONTINUE
TO MONITOR AI-RELATED POLICY AND
LEGISLATIVE ACTIVITY.
A COUPLE OF TWO RECENT POLICY
ITEMS, IN EARLY AUGUST, THE NIH
OFFICE OF SCIENCE POLICY RELAYS
LERELEASED A POLICIES GUIDE.
I ENCOURAGE YOU TO TAKE A LOOK.
AND AT THE END OF JULY, THE
WHITE HOUSE RELEASED A FACT
SHEET ANNOUNCING ACTIONS TAKEN
ACROSS FEDERAL AGENCIES ON
RESPONSIBLE A.I. USE FOLLOWING
LAST YEAR'S EXECUTIVE ORDER.
IN ADDITION, I WANTED TO MENTION
THAT 30 ARTIFICIAL
INTELLIGENCE-RELATED -- HAVE
BEEN INTRODUCED IN THE CURRENT
CONGRESS.
FIVE NEW BILLS HAVE BEEN
INTRODUCED AT THE BOARD OF
REGENTS MEETING, AND A COUPLE
HAVE NEWLY -- THE BILLS ARE
FOCUSED ON TOPICS LIKE CAPACITY
BUILDING GUIDANCE AND STANDARDS
DEVELOPMENT AND I DID WANT TO
HIGHLIGHT A BILL THAT WAS
INTRODUCED ON JULY 30TH, WHICH
FOR RECENT -- TEXT WAS RECENTLY
ADDED THAT WOULD ESTABLISH NLM
CENTRAL HUB FOR FEDERATED DATA
SHARING AND ESTABLISH A DATA
SCIENCE PROGRAM FOR DIVERSE --
WITH BIOMEDICAL RESEARCH DATA
USERS.
IN ADDITION TO THAT, THREE
IDENTIFIED BILLS ALSO FOCUS ON
A.I. HAVE BEEN APPROVED BY THE
COMMITTEES AND ARE AWAITING
PLACEMENT ON THE CALENDAR FOR
CONSIDERATION.
BEYOND THAT, CONGRESS IS BACK IN
SESSION THIS WEEK.
WE CONTINUE -- THE FISCAL YEAR
2025 APPROPRIATIONS PROCESS.
LAST FRIDAY, SEPTEMBER 6TH, THE
HOUSE MAJORITY RELEASED DRAFT
BILL TEXT FOR CONTINUED
RESOLUTION THAT WOULD EXTEND
CURRENT FUNDING LEVELS FOR THE
FEDERAL GOVERNMENT AT FISCAL
2024 LEVELS THROUGH MARCH 2025.
THE SENATE FISCAL YEAR TWEB 25 5
APPROPRIATIONS BILL HAS BEEN
INTRODUCED AND WAS APPROVED IN
EARLY AUGUST BY THE
APPROPRIATIONS COMMITTEE AND IS
AWAITING PLACEMENT ON THE SENATE
CALENDAR.
NOTED THAT BILL PROPOSES
$50.2 BILLION -- AN INCREASE OF
ABOUT $2 MILLION RELATIVE TO THE
2024 FUNDING LEVEL.
IN ADDITION, IT PROPOSES
$598 MILLION FOR NLM, A
$100 MILLION INCREASE OVER THE
FISCAL 2024 LEVEL, FOR A NEW
DATA INITIATIVE TO ADVANCE THE
APPLICATION OF A.I. IN
BIOMEDICAL RESEARCH.
THE HOUSE BILL, THE HOUSE
APPROPRIATIONS BILL FOR FISCAL
YEAR 2025, HAS BEEN PLACED ON
THE HOUSE CALENDAR FOR
CONSIDERATION.
THAT ONE PROPOSES $48.6 BILLION
FOR NIH, THE SAME AS THE FISCAL
YEAR 2024 LEVEL, AND IT PROPOSES
$4.4 BILLION FOR A PROPOSED
CONSOLIDATED INSTITUTE THAT
WOULD INCLUDE NLM, GENERAL
MEDICINE AND -- INSTITUTE AT THE
SAME COMBINED -- FOR YEAR 2024
ENACTED LEVELS.
THE ONLY OTHER THING I DID WANT
TO -- THERE'S BEEN FIVE
ADDITIONAL NON-A.I.-RELATED
BILLS THAT HAVE BEEN INTRODUCED
SINCE THE LAST BOARD MEETING.
ONE OF THEM IN PARTICULAR I
WANTED TO MENTION, LONG COVID
RESEARCH MOONSHOT ACT WAS
INTRODUCED ON AUGUST 1ST AND
WOULD REQUIRE NIH TO ESTABLISH A
LONG COVID RESEARCH PROGRAM.
THE BILL WOULD REQUIRE A DATA
SYSTEM TO BE ESTABLISHED,
MAINTAINED AND OPERATED AT NLM,
AND ADDITIONALLY IT WOULD
REQUIRE NLM TO ESTABLISH,
MAINTAIN AND CREATE A PROGRAM TO
PROVIDE INFORMATION ON RESEARCH
AND PREVENTION ACTIVITIES THAT
RELATE TO LONG COVID.
WITH THAT, STEVE, I'LL TURN IT
BACK OVER TO YOU.
THANK YOU.
>> THANK YOU.
WE NOW HAVE APPROXIMATELY 15
MINUTES OR MAYBE LESS FOR
QUESTIONS AND DISCUSSION.
>> SO ABBREVIATED DISCUSSION,
FOR THOSE IN THE ROOM, IT'S
BREAK TIME.
SO THANK YOU FOR THAT REALLY
COMPREHENSIVE REPORT ON THE
THINGS THAT THE NLM IS -- I
THINK THIS IS REALLY A GREAT --
>> REGARDING THE INNOVATION
PROGRAM, IT KIND OF MADE ME
THINK AS I'VE CONTACTED THE HELP
DESK THEY TELL ME THEY DID NOT
DO SUCH AND SUCH OR PROVIDE
CERTAIN FUNCTIONALITIES.
WITHIN THE PUBMED.
SO IS THAT HELP DESK DATA --
DOES IT HAVE ANY POTENTIAL USE
FOR THE INNOVATION PROGRAM?
AND ALSO ARE THERE OPPORTUNITIES
TO PROVIDE YOU WITH --
>> SO ABSOLUTELY.
WE'RE TRYWHAT WE'RE TRYING TO WS
A WAY TO STRATEGIZE AND PROGRAM
BOTH USE OF OUR CURRENT
OFFERINGS AND SERVICES, AND
THAT'S INPUT THAT WE GET THROUGH
CUSTOMER SERVICE HELP DESK, OUR
PRODUCT DEVELOPMENT TEAM'S
FREQUENT MEETINGS THAT WORK WITH
THE COMMUNITY AND THEY GET
DIRECT -- SO THERE IS GOING TO
BE SOME -- BETWEEN IMPROVEMENTS
TO PRODUCTS AND SERVICES AND
THEN BUILDING THINGS.
WHAT WE JUST HEARD, ALL OF THE
LEGISLATION AROUND A.I., THE
DIRECTOR OF NIH'S PRIORITIES,
WE'RE GOING TO LEARN ABOUT THAT
HERE IN THE NEXT PRESENTATION,
ARE ALL LOOKING AT SOME NEW
CHALLENGES BY NLM TO LEAD ON,
AND SO BUILDING A FRAMEWORK TO
TRY TO CROSSWALK ALL OF THAT NEW
WORK AGAINST EVERYTHING THAT
WE'RE DOING, THAT'S A PIECE OF
THE INNOVATION GOVERNANCE THAT
WE HEARD ABOUT.
WHAT ARE IDEAS THAT CAN BE
ASSIGNED OR KIND OF -- THE
DEVELOPMENT TEAMS THEMSELVES TO
WORK WITH, MAYBE WITH ADDITIONAL
RESOURCES.
SO WHAT WE'RE TRYING TO DO IS
MAKE SURE THAT WE'RE NOT JUST
DOING SILOED THINKING, THAT WHAT
WE HAVE TODAY IS KIND OF THE
FRAMEWORK FOR EVERYTHING NEW.
WE'RE TRYING TO BUILD A NEW
MANAGEMENT IN IDEATION
FRAMEWORK, BOTH BOTTOM UP AND
TOP DOWN, TOP DOWN MEANING
THINGS COMING AT US FROM
CONGRESS, FROM THE DEPARTMENT,
PLUS FROM NIH.
SO THE INNOVATION PROGRAM COULD
BE A CRUCIBLE AND KIND OF GET
WORK TOGETHER AND ALIGNED
AGAINST OUR POLICIES,
STRATEGIES, AND INVESTED IN OUR
WORKFORCE.
SO THINK THAT'S THE EXCITING
PIECE, IS THAT WE'RE ALSO TRYING
TO BUILD THESE INNOVATION
FACILITATORS AT A MID LEVEL
CAREER OCCUPATIONAL OPPORTUNITY
FOR STAFF TO UNDERSTAND HOW DOES
THE WORK NLM DOES AND THE --
INTERCONNECT WITH ALL THESE
OPPORTUNITIES AND CHALLENGES AT
THE LIBRARY.
DOES THAT HELP?
>> YEAH, THANK YOU.
>> SO THIS IS JOHN BARTRAM.
WURNTION REALLY GREAT TO HEAR
ABOUT THE BIOEDUCATION COMMENT
BECAUSE OBVIOUSLY WE HAVE -- IN
THE SPACE FORCE, MY COLLEAGUES
IN THE ARMY AND THE NAVY,
ENSURING THAT SCIENCE AND
MATHEMATICAL AND ENGINEERING
BASE OUT THEREMENT CAN YOU TELL
ME WHAT -- YOU'RE TARGETING AND
IF YOU WERE TARGETING MIDDLE
SCHOOL, SIXTH, SEVENTH, EIGHTH
GRADE, BECAUSE OUR UNDERSTANDING
IS TARGETING AT THOSE YOUNGER
AGES, THEN THEY'RE NOT LINING RO
ENTER INTO A COLLEGE PROGRAM AND
A BE SUCCESSFUL, SO JUST TRYING
TO UNDERSTAND WHAT YOUR TARGET
AUDIENCE IS FOR THAT PROGRAM.
>> SO I DON'T KNOW -- MY
UNDERSTANDING IS THAT IT WAS
TARGETED TOWARDS USERS OF
MOLECULAR BIOLOGY SERVICES THAT
ARE OPERATED BY NLM AND NCBI, SO
IT'S PROBABLY A FEW GRADES ABOVE
THAT.
BUT I DON'T KNOW THAT FOR SURE
SO IF THERE'S NO ONE IN THE ROOM
THAT KNOWS EXACTLY, WE COULD GET
BACK TO YOU, PAUL.
>> IT WAS AIMED AT --
[INAUDIBLE]
>> I HEAR WHAT YOU'RE SAYING,
MAYBE THERE IS AN OPPORTUNITY
FOR US TO ALSO THINK ABOUT HOW
DO WE BUILD THOSE FOUNDATIONAL
MODELS THAT ARE AS YOU'RE SAYING
MIDDLE SCHOOL LEVEL TO BRING
PEOPLE IN TO STEM.
>> AND I'LL TOUCH BASE WITH
YOUR -- IT MIGHT BE AN
OPPORTUNITY FOR US TO THINK
ABOUT WHERE WE'RE REACHING OUT
ON RECRUITMENT.
>> I'M NOT HEARING ANYTHING, DR.
>> THESE ARE THE TOPICS THAT I'D
LIKE TO COVER WITH YOU TODAY.
JUST BRIEFLY UPDATE YOU ON A
NUMBER OF LEADERSHIP CHANGES AT
THE AGENCY, TALK A LITTLE BIT
ABOUT THE BUDGET, AND THEN MOST
IMPORTANTLY, TO SHARE WITH YOU
SOME OF THE NIH DIRECTOR'S
VISIONS.
AND I'LL TRY MY BEST TO CHANNEL
HER.
SHE DOES IT MUCH BETTER THAN I
DO, BUT I'LL GIVE IT MY ALL.
THIS SHOULD NOT BE SO HARD!
OKAY.
LET'S SEE.
THAT MAGIC BUTTON DIDN'T WORK,
MY FRIEND.
NONE OF THEM ARE WORKING.
OKAY.
I FOUND ANOTHER BUTTON.
IT WORKS.
GREAT.
[LAUGHTER]
SO BEFORE I GIVE YOU THE
UPDATES, I WANTED TO JUST TAKE A
MOMENT TO PERSONALLY THANK STEVE
SHERRY FOR AN EXTRAORDINARY JOB
AS THE ACTING DIRECTOR OF NLM.
I KNOW BETTER THAN MOST HOW HARD
IT IS TO BE AN ACTING ANYTHING
AROUND HERE.
AND STEVE HAS PERFORMED
EXCEPTIONALLY WELL, AND I WILL
SAY ALL OF HIS TEAM AT NLM HAVE
REALLY RISEN TO THE OCCASION.
SOMETIMES WHEN THERE'S INTERIM
LEADERSHIP, IT'S COMPLICATED,
BUT I DON'T THINK THAT NLM HAS
MISSED A BEAT, AND I REALLY AM
THANKFUL TO ALL OF THEM, ALL OF
THE STAFF MEMBERS, BUT
PARTICULARLY TO STEVE.
I DID WANT TO SHARE THAT WITH
YOU.
OKAY.
SO TO START WITH, SOME OF THE
DEPARTURES, DR. JOSH GORDON, WHO
WAS THE DIRECTOR OF NIMH FOR A
NUMBER OF YEARS, SINCE 2016, HAS
MOVED TO THE EXTRAMURAL WORLD TO
COLUMBIA UNIVERSITY FROM WHENCE
WE RECRUITED HIM FROM, AND HE
WILL BE THE CHAIR AND
PSYCHIATRIST IN CHIEF OF THE
COLUMBIA SYSTEM.
SO WE WISH HIM WELL, OF COURSE.
IN HIS PLACE, AS ACTING DIRECTOR
OF NIMH, IS DR. SHELLI
AVENEVOLI.
SHELLEY HAS BEEN AT NIH FOR A
NUMBER OF YEARS AND IS REALLY
UNIQUELY QUALIFIED TO FILL IN
THIS ROLE, AND SO WE ARE LOOKING
FORWARD TO THE SEARCH FOR THE
PERMANENT DIRECTOR, BUT KNOW
THAT THE NIMH IS IN VERY, VERY
GOOD HANDS.
WE HAVE A NEW DIRECTOR OF THE
FOGARTY INTERNATIONAL CENTER,
DR. CAT KATHY NEUZIL.
WE ARE DELIGHTED TO HAVE HER
HERE.
AND WE ARE VERY THANKFUL TO
DR. PETER KILMARX, WHO SERVED AS
THE ACTING DIRECTOR FROM THE
BEGINNING OF 2023.
NEXT IS THE DIRECTOR FOR THE
CENTER FOR INFORMATION
TECHNOLOGY, DR. SHAWN MOONEY.
SHAWN WAS RECRUITED FROM THE
UNIVERSITY OF WASHINGTON SCHOOL
OF MEDICINE.
HE HAS REALLY SPENT HIS CAREER
DEVELOPING EFFECTIVE AND
COLLABORATIVE COMPUTATIONAL
SYSTEMS SUPPORT BY MEDICAL
RESEARCH IS IDEAL TO LEAD THE 16
CENTER INTO THE FUTURE.
THIS IS A KEY RECRUIT FOR NLM
ALSO BECAUSE WE VIEW THESE AS
TWIN ORGANIZATIONS.
THEY WILL BE SUPPORTING EACH
OTHER, ALREADY ARE DOING THAT IN
A VERY SIGNIFICANT WAY, AND WE
ARE DELIGHTED THAT SEAN WAS ABLE
TO HIT THE GROUND RUNNING, IN
LARGE PART BECAUSE OF THE ACTING
DIRECTOR OF THAT ORGANIZATION,
DR. D'SOUZA, A NAME FAMILIAR TO
THE NLM STAFF, WE BORROWED IVOR
FROM NLM AND THEN WE NEVER GAVE
HIM BACK BECAUSE IVOR IS NOW THE
DEPUTY DIRECTOR AT CIT.
ANYWAY, OUTSTANDING JOB BY IVOR.
AND VERY RECENTLY, DR. CAROLYN
HUDDER HAS BEEN APPOINTED THE
DIRECTOR OF THE OFFICE OF
STRATEGIC COORDINATION, AND THE
DIVISION WITHIN THE OFFICE OF
THE DIRECTOR, FONDLY KNOWN AT
DPCPSI.
THE OFFICE OF STRATEGIC
COORDINATION IS THE HOME OF THE
COMMON FUND.
THAT'S WHY THIS IS SUCH A
SIGNIFICANT APPOINTMENT.
VERY LARGE RESOURCE SET TO
SUPPORT RESEARCH THAT REALLY
FALLS WITHIN THE BOUNDARIES OF
THE DIFFERENT INSTITUTES.
NOT QUITE SURE WHICH INSTITUTE
SHOULD SUPPORT AND OFTEN
MULTIPLE INSTITUTES ARE VERY
INTERESTED IN SUPPORTING -- THE
COMMON FUND.
SO QUICK BUDGET UPDATE.
OH, AND I SHOULD SAY THERE IS
ONE OTHER SEARCH THAT YOU'RE
PROBABLY INTERESTED IN, THE
SEARCH FOR THE NLM DIRECTOR IS
ONGOING AND WE ARE MAKING VERY
FINE PROGRESS.
STAY TUNED.
THAT'S IT.
THAT'S ALL YOU GET.
OKAY.
I SAW THAT.
THE DEPUTY DOESN'T GET TO MAKE
BIG ANNOUNCEMENTS, YOU KNOW
THAT.
ALL RIGHT.
BUDGET UPDATE.
SO, THIS IS THE YEAR THAT IS
FISCAL YEAR 2024.
SLIGHT DECREASE OVERALL FROM
'23.
THIS WAS IN LARGE PART BECAUSE
THERE WAS NO BACKFILL OF THE
PROGRAMS THAT WERE SUPPORTIVE TO
THE CURES ACCELERATION NETWORK.
SO WHEN YOU REMOVE THAT
SO-CALLED BACKFILL, IT RESULTED
IN A SLIGHT DIN NEUTION.
DIM NEWS.
DIMINUTION.I WILL TELL YOU THATE
DIFFICULT BUDGET YEAR THAT WE
ARE IN, THIS WAS A TREMENDOUS
WIN FOR NIH.
SO PLEASE, DO NOT BERATE
LEGISLATORS, PLEASE DO NOT
BERATE STAFF.
THEY DID A GREAT JOB FOR US
HERE.
THIS IS A VERY, VERY, VERY GOOD
OUTCOME, GIVEN ALL OF THE
CIRCUMSTANCES OF THE YEAR.
NOW AS WE LOOK FORWARD TO THE
PRESIDENT'S BUDGET IN 2025, AS
YOU CAN SEE THERE IS A REQUEST
FOR A PLUS-UP OF ABOUT
$2.8 BILLION.
THE PANDEMIC PREPAREDNESS
INITIATIVE HAS BEEN PROPOSED
AGAIN BY HHS.
UNFORTUNATELY IT DIDN'T MAKE IT
THROUGH THIS CURRENT YEAR.
THERE IS ALSO A RESTORATION OF
THE SAIR JRESTITUTION OFTHE VARO
WE'RE LOOKING FORWARD TO SEEING
HOW IT ALL PLAYS OUT.
THIS IS AN ELECTION YEAR, AS I'M
SURE YOU ALL KNOW, AND THAT ADDS
AN ADDITIONAL LEVEL OF
COMPLEXITY TO HOW THIS ALL WILL
PLAY OUT.
SO AGAIN, STAY TUNED, AND WE
WILL SEE HOW IT WORKS.
IN THE INITIAL DISCUSSIONS, THE
HOUSE PROPOSED A FLAT BUDGET,
WHICH AGAIN WE THOUGHT WAS, YOU
KNOW, A GOOD SIGN OF SUPPORT,
GIVEN ALL THE COMPLICATING
FEATURES THAT THEY HAVE TO DEAL
WITH, AND THE SENATE PROPOSED A
SLIGHT PLUS-UP, SO WE'LL CROSS
OUR FINGERS AND SEE HOW IT ALL
LANDS.
SO THE MOST IMPORTANT PART OF MY
DISCUSSION THIS MORNING WITH YOU
IS JUST TO GIVE YOU SOME
INSIGHTS INTO MONICA'S VISION.
I'D LIKE TO BEGIN WITH SOMETHING
KNOWN AS CARE FOR HEALTH.
SO WHEN LACK OF -- MONICA IS THE
17TH DIRECTOR OF NIH, SHE'S ONLY
THE SECOND WOMAN TO HOLD THE
POSITION, AND SHE IS THE FIRST
SURGEON TO HOLD THE POSITION.
THOSE OF YOU WHO KNOW HOW
SURGEONS THINK, YES, SHE IS ALL
THAT.
SHE IS THAT -- SHE MAKES HER
DECISIONS.
ONE OF THE THINGS THAT SHE
ARTICULATED AS SHE WAS WALKING
IN THE DOOR IS THAT OUR WORK IS
NOT FINISHED WHEN WE DELIVER
SCIENTIFIC DISCOVERIES WORK IS
FINISHED WHEN ALL PEOPLE ARE
LIVING LONG AND HEALTHY LIVES.
IN OTHER WORDS, ALL THOSE
SCIENCE, NATURE, CELL, NAND
JOURNANEWENGLAND JOURNAL OF MED,
PICK YOUR JOURNAL, ALL THOSE ARE
GREAT BUT THAT'S NOT WHAT
COUNTS.
WHAT COUNTS IS MAKING SURE THAT
PEOPLE ARE LIVING LONG AND
HEALTHY LIVES.
AND THE SECOND THING THAT SHE
SPOKE TO, WHEN SHE ARRIVED, IS
THAT RESEARCH IS NOT ONLY THE
LABORATORY, NOT ONLY THE CLINIC,
BUT IT ALSO HAS TO ENGAGE THE
COMMUNITY.
AND SHE IS VERY, VERY PASSIONATE
ABOUT THIS.
I THINK MOST OF YOU KNOW HER
PERSONAL STORY.
SHE GREW UP IN WYOMING ON A
RANCH, A WORKING RANCH, MANY,
MANY MILES FROM THE NEAREST
TOWN.
HER FAMILY HAD TO BASICALLY MOVE
FROM THE RANCH TO THE TOWN IN
ORDER FOR THE KIDS TO GO TO
SCHOOL WHEN THEY WERE YOUNG.
SO REAL WORLD AREA, AND SO SHE
FEELS VERY PASSIONATE ABOUT THE
NEED TO ENCOMPASS ALL THREE OF
THESE ELEMENTS.
WITHOUT ALL THREE, WE'RE NOT
DOING THE VERY BEST JOB WE CAN.
AND THE FINAL ONE IS THE THIRD
BULLET ON THIS SLIDE.
PROGRESS IS ACCELERATED WHEN
ADVANCED SCIENTIFIC METHODS SUCH
AS NEW DATA ANALYTICS ARE
APPLIED TO DATA THAT INCLUDES
EVERYONE, AND WHEN NEW
DISCOVERIES ARE RAPIDLY AND
EQUITABLY ADOPTED IN CLINICAL
CARE.
SO THAT SAYS A LOT, AND SO MUCH
OF THIS FALLS IN THE
INTERSECTION OF WHAT NLM IS
ABOUT.
AND I'LL HAVE A LITTLE BIT MORE
TO SAY ABOUT THAT IN THE FUTURE.
SO ONE OF THE OBSERVATIONS THAT
MON SCA SHARED WITH US WHEN SHE
ARRIVED IS THAT LACK OF ACCESS
IS A MAJOR BARRIER TO RESEARCH
PARTICIPATION.
AND THIS IS MULTIPLE DIMENSIONS
FOR THIS STATE, ALL RIGHT?
WE KNOW THERE ARE GROUPS THAT
ARE GENERALLY UNDERREPRESENTED
IN RESEARCH, BUT HOW OFTEN HAVE
YOU THOUGHT ABOUT RURAL
COMMUNITIES THAT ARE ALMOST
NEVER INVOLVED IN RESEARCH?
AND THAT LACK OF REPRESENTATION
COMPROMISES THE GENERALIZABILITY
OF RESEARCH OUTCOMES AND IT
COMPOUNDS THE HEALTH DISPARITIES
THAT WE OBSERVE ACROSS MULTIPLE
DOMAINS.
AND WE FEEL, THEREFORE, THAT
THERE'S A CRITICAL NEED TO
EXTEND RESEARCH PARTICIPATION TO
A MUCH BROADER SET OF
COMMUNITIES, AND TO DO THAT,
WE'VE GOT TO ENSURE THAT THERE'S
THE SUSTAINED RESEARCH
INFRASTRUCTURE, YOU KNOW, THIS
SORT OF TAGLINE, YOU CAN'T POWER
SHOOT IT AND THEN --
PRECIPITOUSLY.
THIS IS SO CRITICAL.
FOR EXAMPLE, WHEN YOU HAVE A
MAJORITY OF PATIENTS, FOR
EXAMPLE, IN RURAL COMMUNITIES,
YOU DO NOT HAVE ACCESS TO A
LOCAL TRIAL AVAILABLE FOR CANCER
DIAGNOSIS, THAT MEANS THAT THEIR
CARE IS BEING COMPROMISED.
AND SO WE NEED TO BEGIN TO
REDRESS THIS, AND MONICA AND HER
TEAM ARE UNDERTAKING THIS.
SO OUR VISION IS TO CONNECT
RESEARCH TO PRIMARY CARE TO
OPTIMIZE OUTCOMES FOR ALL
PATIENTS.
AND THEN ULTIMATELY TO EXPAND
BIOMEDICAL RESEARCH DATA USE TO
INFORM NEW RESEARCH AND IMPROVE
HEALTH OUTCOMES.
SO WITH REGARD TO THE FORMER,
THE CONNECTING RESEARCH TO
PRIMARY CARE, MONICA HAS COME UP
WITH THIS COMMUNITY ADVANCING
RESEARCH EQUITY FOR HEALTH, AND
THE MAIN THRUST OF THIS IS TO
INTEGRATE RESEARCH INTO CLINICAL
CARE ENVIRONMENTS ACROSS THE
NATION.
NOT JUST THE TERTIARY ACADEMIC
HEALTH CENTERS BUT IN THE
COMMUNITY WHERE PEOPLE ACTUALLY
RECEIVE THEIR CARE ON A REGULAR
BASIS.
TO HAVE TO INTEGRATE THAT
RESEARCH INTO CLINICAL CARE
ENVIRONMENTS.
IN SO DOING, WE HOPE TO ENGENDER
MORE TRUST BY ADDRESSING THE
COMMUNITY NEED.
SO THE WAY THIS WORKS IS, YOU
DON'T TELL A COMMUNITY WHAT THEY
NEED.
YOU ASK THE COMMUNITY, THEN YOU
LISTEN TO THE COMMUNITY, AND
THEN YOU OPERATIONALIZE BASED ON
WHAT THEIR SPECIFIC NEEDS AND
INTERESTS ARE.
IN DOING THIS, WE HOPE TO GET A
LONGITUDAL CONNECTION OF
CLINICAL DATA TO ADDRESS HEALTH
ULTIMATELY ACROSS THE LIFESPAN,
AND OF COURSE THIS BOTH
INCREASES ADHERENCE TO
EVIDENCE-BASED CARE AND IT ALSO
COULD INCREASE THE EFFICIENCY OF
CARE DELIVERY.
SO AGAIN, THIS IS SOMETHING THAT
IS QUITE NOVEL IN TERMS OF NIH
APPROACH.
SO MUCH OF WHAT WE DO GOES
THROUGH THE TRADITIONAL ACADEMIC
HEALTH CENTERS, AND THIS IS
TRYING TO SHIFT THE FOCUS.
SO IN TERMS OF EXPANDING
RESEARCH, I'VE COME TO THE DATA
PEOPLE, THIS IS KIND OF A FUN
THING TO DO, YOU KNOW, HOW BEST
TO DO THIS TO INFORM THE
RESEARCH, BUT MOST IMPORTANTLY
TO IMPROVE HEALTH OUTCOMES.
FIRST WE'VE GOT TO INTEGRATE
DATA FROM BASIC AND SOCIAL
SCIENCE RESEARCH, PUBLIC HEALTH
AND CLINICAL CARE.
SO EVERYBODY SAYS OKAY, THAT'S
NICE, BUT HOW MANY PEOPLE ARE
ACTUALLY SUCCESSFUL IN DOING
THAT?
BECAUSE THOSE DIFFERENT
DISCIPLINES HAVE DIFFERENT
LEXICONS, THEY LOOK AT THINGS IN
A DIFFERENT WAY, THERE ARE NO
STANDARD ELEMENTS, YOU KNOW, ALL
THE THINGS THAT WE VALUE IN
ORDER TO BE ABLE TO STREAMLINE
AND HARMONIZE RESEARCH, TO BE
ABLE TO DO THAT IS NON-TRIVIAL,
BUT YET THAT'S PRECISELY WHAT WE
NEED.
BECAUSE UNLESS WE MERGE ZIP CODE
WITH GENOME, WE'RE NOT GOING TO
GET TO WHERE WE NEED TO BE.
NOW, THAT MEANS THAT THE AMOUNT
OF DATA THAT WE'RE GOING TO BE
DEALING WITH, YOU THINK YOU HAVE
A LOT OF DATA NOW, IT'S NOW JUST
INCREASED EXPONENTIALLY.
AND SO WE'LL HAVE TO INCREASE
THE CAPACITY FOR DATA HOSTING.
THE ACCESS TO THOSE DATA HAVE TO
BE MAINTAINED AT A LOW COST
USING OPEN INDUSTRY STANDARDS.
EVERYBODY CAN'T HAVE THEIR OWN
SECRET SAUCE.
WE'VE GOT TO START GETTING A
UNIFORMED APPROACH, ALL OPEN
ACCESS, SO THAT EVERYBODY HAS A
FAIR, FAIR, FAIR SHOT AT THIS.
AND, AS WE'RE DOING THIS, WE'VE
GOT TO DEVELOP ANALYTIC TOOLS
THAT ARE POSITIONED FOR ANYBODY
TO USE.
IT JUST CAN'T BE THE SUPER
EXPERTS AT THE TRADITIONAL
ACADEMIC HEALTH CENTERS AROUND
THE COUNTRY.
IF YOU ARE IN A LOW RESOURCE
INSTITUTION, ONE THAT DOES NOT
RECEIVE A LOT OF NIH FUNDING,
THERE IS NO REASON WHY YOU CAN'T
ENGAGE IN THE TYPE OF RESEARCH
THAT WE'RE TALKING ABOUT HERE.
BASICALLY YOU JUST NEED A LAPTOP
AND YOU NEED SOME SORT OF ACCESS
TO THE CLOUD.
AND INCREASINGLY, WE'RE FINDING
IN SOME OF THESE PROGRAMS THERE
WILL BE CERTAINLY CHAMPIONED BY
NLM, WE'RE FINDING THAT
INSTITUTIONS THAT HAVE BEEN
TRADITIONALLY LOW RESOURCED ARE
EMBRACING THAT SORT OF OPTION.
AND ARE DOING IT WELL.
NOW, IT REQUIRES SOME TRAINING,
REQUIRES SOME BASIC
INFRASTRUCTURE, BUT A LOT
DIFFERENT THAN BUILDING ANOTHER
QUATERNARY ACADEMIC HEALTH
CENTER.
IN ALL OF THIS, IF ALL OF YOU
HAVE YOUR FAVORITE DATASET, I
DON'T WANT TO TAKE YOUR DATASET.
I JUST WANT TO HAVE ACCESS TO
IT.
I WANT TO BE ABLE TO COMPUTE ON
IT, SLICE, DICE, DESIGN AND YOU
GET TO KEEP YOUR KAY TA, BECAUSE
THERE'S NOT A HARD DRIVE LARGE
ENOUGH IN THE WORLD TO TAKE ALL
OF YOUR DATA, RIGHT?
SO IT'S A FEDERATED SYSTEM.
AND THE ISSUE FOR PROVIDING THE
EDUCATION AND WORKFORCE
DEVELOPMENT IS A VERY CRITICAL
PIECE FOR ALL OF THIS TO WORK.
SO THE NLM STRATEGIC PLAN WHICH
YOU'RE ALL VERY FAMILIAR WITH, I
HOPE, HAS SOME PILLARS, IF YOU
WILL, TO ACCELERATE DISCOVERY IN
ADVANCED HEALTH THROUGH
DATA-DRIVEN SCIENCE, REACH MORE
PEOPLE IN MORE WAYS TO ENHANCE
DISSEMINATION, AND THEN THAT
WORKFORCE PIECE, TO REALLY
ENSURE THAT WE HAVE A WORKFORCE
THAT'S PREPARED TO DO THIS, AT A
CUTTING-EDGE LEVEL.
SO WHAT CAN NLM BE IN THE FUT
FUTURE?
NLM IS DOING AN AMAZING JOB NOW,
BUT WE HAVE EVEN HIGHER
ASPIRATIONS FOR THE
ORGANIZATION.
SO FEDERATED BIOMEDICAL RESEARCH
DATA BY SHARING INFRASTRUCTURE.
COLLABORATIVE DATA SHARING USING
THE USE ENVIRONMENT AND DATA
ACCESS MODELS, AND AGAIN, THOSE
EDUCATIONAL PROGRAMS TO PROMOTE
EQUITABLE RESOURCE AVAILABILITY.
IT CAN'T JUST BE YOUR FAVORITE
INSTITUTION ON THE EAST COAST OR
YOUR FAVORITE INSTITUTION ON THE
WEST COAST.
I GUESS THERE ARE A COUPLE IN
THE MIDDLE NOW, BUT FOR THE MOST
PART, YOU KNOW, THESE THINGS ARE
HIGHLY CONCENTRATED IN A VERY
FEW NUMBER OF INSTITUTIONS, AND
SO WE WANT TO DISSEMINATE THIS
MUCH, MUCH MORE BROADLY.
SO WE ENVISION THAT NLM SERVES
AS THE EPICENTER FOR NIH-FUNDED
RESEARCH TO ADVANCE INFORMATION
SCIENCE, ANALYTICS, AND DATA
SCIENCE.
WE ENVISION NLM TO CONTINUE TO
PROVIDE A FOCUS FOR THE
COLLECTION OF CLINICAL CARE
ENVIRONMENT DATA, SO-CALLED REAL
WORLD DATA.
AND AGAIN, EASY TO SAY, REALLY
HARD TO DO.
ALL SORTS OF ETHICAL ISSUES YOU
HAVE TO DEAL WITH.
PRIVACY ISSUES.
LOTS OF THINGS YOU'VE GOT TO
DEAL WITH, BUT HONESTLY, IF THE
FINANCE WORLD HAS BEEN ABLE TO
FIGURE OUT HOW TO DE-IDENTIFY
THINGS, I'M SURE WE'RE UP TO
THAT TASK ALSO.
AND I KEEP HARPING ON THIS
EDUCATIONAL PIECE, BECAUSE THE
ONE THING THAT I DO WHEN I GO
AROUND THE COUNTRY AND I SPEAK
TO YOUNG PEOPLE OR I SPEAK TO
THEIR MENTORS, THEY'RE BOTH
SAYING THE SAME THING.
I DON'T FEEL PREPARED TO REALLY
ENGAGE TO THE FULL EXTENT
BECAUSE OF THE EXPLOSION OF
DATA, BECAUSE OF THE EX-MOTION
OF ANALYTICS.
EXPLOSION
OF ANALYTICS, WHAT'S THE CLOUD,
ALL OF THESE KIND OF THINGS,
BECAUSE YOU ARE ALL EXPERTS IN
VARIOUS DOMAINS THAT TOUCH ON
THAT, BUT FOR THE AVERAGE
INVESTIGATOR, FOR THE AVERAGE
GRADUATE STUDENT, FOR THE
AVERAGE MEDICAL RESIDENT, SOME
OF THIS IS VERY ALIEN, AND WE'VE
GOT TO DO A BETTER JOB, AND NLM
WE THINK IS THE PLACE TO
CONTINUE TO DO THIS AND EXPAND
OUT WHAT THEY'RE ALREADY DOING.
THAT'S NOT TO SAY THAT THEY'RE
NOT DOING THINGS NOW.
OF COURSE THEY ARE.
WE'VE GOT TO DO MORE.
WE HAVE TO PUT THIS INTO
OVERDRIVE.
AND THIS OPEN AND SCALABLE
FEDERATED DATA SYSTEM, YOU'VE
ALREADY GOT THIS AMAZING
ECOSYSTEM WITH MEDLINEPLUS,
MESH, CLINICAL TRIALS., BLAST,
WE COULD SPEND THE NEXT 20
MINUTES JUST TALKING ABOUT THESE
VARIOUS EQUITIES, BUT THESE ARE
THE KINDS OF THINGS WE HAVE TO
CONTINUE TO BUILD ON.
THESE ARE THE KINDS OF THINGS
THAT WE HAVE TO ENSURE SCALE SO
THAT EVERYBODY HAS ACCESS TO
THESE TYPES OF -- FINALLY TO
PROVIDE A SO-CALLED FRONT DOOR,
IF YOU WILL, WHERE BIOMEDICAL,
CLINICAL RESEARCH DOMAIN
EXPERTS, TRAINEES, PATIENTS,
THEIR ADVOCATES OR ANYBODY ELSE
CAN SEEK ANSWERS TO NOVEL
QUESTIONS, AND SO BASICALLY YOU
WANT A CITIZEN, A CITIZEN
SCIENTIST, IF YOU WILL, WHO HAS
A QUESTION THAT THEY NEED
ANSWERING TO BE ABLE TO ENTER
THIS WEALTH OF INFORMATION IN A
REASONED WAY, AND IF THEY KNOW
HOW TO WRITE CODE, GREAT, AND
THEY'LL DO IT, THEY'LL GET THEIR
ANSWER VERY QUICKLY, BUT THEY
MAY NOT KNOW, AND SO WE NEED TO
PROVIDE THE WHEREWITHAL SO THAT
THEY EITHER LEARN OR HAVE SOME
SORT OF A SYSTEM, FRONT-END
SYSTEM THAT DOES THAT TYPE OF
WORK, MAYBE NOT AS OBVIOUS TO
"THE ENQUIRTHE INQUIRER, BECAUSE
DON'T DO THAT, IT OPPORTUNITY
LOST.
I DON'T KNOW WHO HAS THE BEST
IDEA.
IS IT THE PERSON FROM AN
ACADEMIC HEALTH CENTER?
MAYBE.
BUT IT MAY BE SOME COLLEGE
SENIOR WHO THOUGHT UP A BETTER
WAY OF DOING SOMETHING AND THEN
MAYBE THEY HAVE THE BEST IDEA.
I DON'T WANT TO BLOCK ANY OF
THOSE FOLKS FROM BEING ABLE TO
ENGAGE.
WE WANT EVERYBODY TO BE ABLE TO
ENGAGE.
NOW AGAIN, THIS IS ASPIRATIONAL,
BUT WE DO THINK THAT IT IS
POSSIBLE.
SO I PURPOSELY WANTED TO LEAVE
TIME FOR DISCUSSION.
HOPEFULLY I SAID A FEW THINGS
THAT PEOPLE THINK, OH, YEAH,
THAT MAKES SENSE.
MAYBE SOME OTHER THINGS THAT
UNFEWER YAIT YUNFEWER YAIT YOU,,
BUT THAT'S OKAY, AND HAPPY TO
TAKE ANY QUESTIONS YOU MIGHT
HAVE.
YES, PLEASE.
>> SO YOU TOUCHED ON THE
TRAINING PROGRAMS.
AND NLM IS I THINK THE ONLY
INSTITUTE THAT TRAINS BIOMEDICAL
INFORMATICS RESEARCHERS AS
OPPOSED TO THE RESEARCHERS IN
BIOMEDICINE WHO USE INFORMATICS.
WHAT DO YOU THINK ABOUT THE IDEA
OF OTHER INSTITUTES CONTRIBUTING
TO THE WORKFORCE DEVELOPMENT FOR
PEOPLE WHO ARE INFORMATIC
SCIENCE --
>> I THINK THAT'S ALREADY
HAPPENING BUT PERHAPS NOT TO THE
EXTENT THAT WE WANT TO.
BECAUSE I THINK PEOPLE ARE
REALIZING THAT THAT'S ONE OF OUR
GREATEST GAPS.
AS ADDITIONAL RESOURCES FOR THIS
PURPOSE BECOME AVAILABLE, I CAN
SEE THAT BEING A MORE
DISTRIBUTED MODEL.
SO NLM WITH THEIR LEADERSHIP IS
GOING TO HAVE TO DECIDE, IS IT
BEST TO HAVE ALL THOSE RESOURCES
FLOWING THROUGH NLM OR DO YOU
REALLY WANT TO HAVE DIFFERENT
OPPORTUNITIES IN THE VARIOUS
INSTITUTES AND CENTERS.
THAT MODEL AS YOU KNOW LEADS TO
SORT OF A BULK -- IN ORDER TO
MAKE IT CANCER-CENTRIC OR
NEUROLOGICALLY CENTRIC, YOU MAY
LOSE SOME OF THE BASIC --
[AUDIO LOST]
>> -- WE ARE ENVIOUS OF OFTEN
PAUSE YOU HAVE SO MANY
ENROLLED -- ENROLLEES AND SUCH
STRONG ELECTRONIC RECORDS
AVAILABLE.
BUT OBVIOUSLY IT IS -- I WON'T
SAY HOMOGENEOUS, BUT IT'S A
UNIQUE SLICE OF THE POPULATION.
ALTHOUGH AGE-WISE, YOU RUN THE
GAMUT, SO THAT'S -- PEDIATRICS
TO SOME EXTENT.
BUT NO, THERE IS OPPORTUNITY TO
COLLABORATE FURTHER, AND THE
FOLKS HERE AT NLM I'M SURE ARE
ALL EARS, AND THEY CAN CONNECT
YOU BACK TO US AS INSTITUTIONAL
LEADERS.
SO THE PERSON WHO I HAVE IN THE
PAST CONNECTED WITH IS
DR. RAMONI?
>> YEAH -- IS MY BOSS AND
DR. RAMONI REPORTS TO US.
>> THAT'S OUR CONNECTION.
DENTISTS STICK TOGETHER USUALLY.
YES, SIR.
>> NELS OLSON FROM -- NAVY.
-- [INAUDIBLE] 9.5 MILLION --
OF DATA.
WE LIVE IN A FAIRLY CONSTRAINED
ENVIRONMENT BUT WOULD LOVE TO
HAVE MORE RESEARCHERS JOIN US.
IS THERE AN YOU A GREEMENT
BETWEEN NLM OR NIH AND -- WHERE
WE CAN FACILITATE SOME SORT OF
SHEPHERDING OR HUSBANDING OF
EX-TECEXTERNAL RESEARCHERS?
>> I DO NOT KNOW OF ANYTHING
SPECIFIC BUT THAT'S MY
IGNORANCE.
THAT DOESN'T MEAN IT DOESN'T
EXIST.
WE HAVE 27 INSTITUTES AND
CENTERS AND THEY ARE PRETTY
INDEPENDENT, AND SO I WOULD BE
VERY SURPRISED IF AT LEAST ONE
OF THEM DOES NOT HAVE SUCH A
RELATIONSHIP.
BUT AGAIN, IF YOU WOULD WORK
WITH YOUR NLM COLLEAGUES AND IF
THEY CAN'T FIND THE ANSWER THAT
THEY NEED, YOU KNOW, WE'LL
CONNECT AND GET THE INFORMATION
FOR YOU.
AND IF ONE DOESN'T EXIST FOR
SOME REASON, AGAIN, WE WOULD BE
DELIGHTED TO HAVE THOSE
CONVERSATIONS.
YES, PLEASE.
>> I WAS VERY MUCH SUPPORTIVE OF
THE DIRECTOR'S VISION TO INVOLVE
COMMUNITIES IN RESEARCH, YET
USUALLY ACADEMIC INSTITUTIONS,
AS WE SAID, ARE THE CENTER OF
RESEARCH EFFORTS.
ARE THERE ANY THOUGHTS OR IDEAS
ABOUT HOW DO YOU INVOLVE
COMMUNITIES IN A WAY THAT
DOESN'T PUT THE BURDEN ON
COMMUNITY DOCTORS, COMMUNITY
HEALTH PROVIDERS, THAT ARE VERY
BUSY THAT PROBABLY DON'T HAVE
THE SAME TIME THAT AN ACADEMIC
PHYSICIAN OR HEALTH PROVIDER
MIGHT HAVE TO DEVOTE TO
RESEARCH.
>> SO YOU'VE CAPTURED IT
PERFECTLY.
THAT'S THE BIGGEST BARRIER TO
MAKING THIS WORK, BECAUSE
COMMUNITY DOCS, COMMUNITY
NURSES, THEY ARE, QUITE FRANKLY,
OVERWHELMED IN MANY INSTANCE.
INSTANCES.
SO WHAT WE WOULD HAVE TO DO TO
MAKE THIS WORK IS TO PROVIDE
RESOURCES FOR A SUSTAINED
INFRASTRUCTURE THAT ENABLES THEM
TO DO WHAT THEY DO REALLY WELL,
BUT ALSO ALLOWS US TO PUT IT
INTO A RESEARCH CONSTRUCT.
NOW, EACH -- AS WE HAVE BEEN
TALKING TO VARIOUS REGIONAL
COMMUNITY HOSPITALS, WE FIND
THAT ONE SIZE DOES NOT FIT ALL.
ONE ORGANIZATION MAY NEED ONE
SET OF THINGS.
ANOTHER ORGANIZATION MAY NEED
EVERYTHING, AND THE THIRD
ORGANIZATION MAY NEED ANOTHER
SET OF SPECIAL THINGS.
SO IT'S GOING TO BE AT LEAST
INITIALLY ONE-OFF NEGOTIATION TO
UNDERSTAND, ONE, WHAT THE
COMMUNITY WOULD LIKE TO BE ABLE
TO DO, AND TWO, HOW COULD WE
BEST ENABLE THEM TO ACHIEVE
THAT.
BECAUSE IF WE COME IN WITH THE
ASSUMPTION THAT, WELL, OF COURSE
THEY'RE GOING TO WANT TO WORK
WITH US WE, WE'RE WONDERFUL, IT
WILL FAIL BECAUSE OF JUST THE
PRACTICALITY OF THE SITUATION.
YET WE KNOW THERE IS AN
INTEREST, WE KNOW THERE IS A
WILLINGNESS, HAVING HAD NOW MANY
CONVERSATIONS WITH ORGANIZATIONS
OF THIS TYPE, BUT IF AND ONLY IF
WE ARE ABLE TO PROVIDE WHAT IS
REQUIRED IN THE WAY OF
INFRASTRUCTURE AND SUPPORT, IT
WOULD BE EASIER IF EVERYBODY
NEEDED THE SAME THING, BUT THAT
SEEMS NOT TO BE THE CASE, AND SO
IT'S GOING TO BE A LITTLE SLOWER
THAN ONE WOULD HOPE, WITH YOU
WE'RE GOING TO HAVE TO DO IT
RIGHT AND WE'LL HAVE TO DO IT IN
THE TIME FRAME THAT IS NEEDED TO
ACHIEVE WHAT WE HOPE IS THE
RESULT WE ALL WANT TO SEE.
BUT YOU HIT IT RIGHT ON THE
HEAD, ABSOLUTELY.
OTHER QUESTIONS?
YES, PLEASE.
>> HI, I'M MICHELLE FROM THE
NATIONAL SCIENCE FOUNDATION.
WE TOTALLY AGREE THAT THE
FEDERATED STRUCTURE IS WHERE YOU
HAVE TO GO.
WHAT I'M WONDERING IS, AND YOU
KNOW, HOW -- HAVE WE THOUGHT
ABOUT ENCOURAGING THOSE BASIC
SCIENTISTS TO CONNECT TO THAT
STRUCTURE AND SHARE, BECAUSE
SOME OF THEM ARE INHERENTLY
DISINTERESTED IN SHARING THEIR
DATA.
>> REALLY?
[LAUGHTER]
SO AGAIN, YOUR OBSERVATION IS
VERY IMPORTANT.
WE HAVE DATA SHARING POLICIES
NOW WHICH REQUIRE A PLAN BE PUT
IN PLACE.
WE TRY TO MAKE IT EASIER AND
EASIER FOR SCIENTISTS OF ALL
FLAVORS, INCLUDING BASIC
SCIENTISTS, SOME OF WHOM WILL BE
BURIED WITH THEIR DATA, AND I
WON'T PICK ON ANY PARTICULAR
SUBDISCIPLINE BUT THERE ARE A
FEW THAT COME TO MIND.
BUT THAT'S THE WHOLE POINT, IS
WE'VE GOT TO -- YOU KNOW, ENSURE
THAT EVERYBODY DOES THIS, SO
THEARVE GETTHAT EVERYBODY GETS M
BENEFIT.
ONE OF THE THINGS WE'RE THINKING
ABOUT IS, CAN WE COME UP WITH AN
APPROACH WHERE PEOPLE ARE REW
REWARDED FOR SHARING DATA SO
INSTEAD OF AWARDING PEOPLE FOR
HOW MANY CNS PAPERS THEY HAVE,
SELL, NATURE, SCIENCE, NEW
ENGLAND JOURNAL, WHICHEVER ONE
YOU LIKE, INSTEAD OF REWARDING
PEOPLE FOR THAT, REWARD THEM FOR
HOW MANY TIMES THEIR DATASET IS
DOWNLOADED.
AND PROVIDE SOME SORT OF METRIC
LIKE THAT.
BECAUSE ONE OF THE GREAT THINGS
IS, WHEN A TRAINEE COMES TO YOU
AND SAYS, YOU KNOW, WE'VE BEEN
DOING IT ALL WRONG BECAUSE I
JUST DOWNLOADED THIS DATASET
FROM SO-AND-SO AND THEY'RE DOING
IT A COMPLETELY DIFFERENT WAY,
THIS LITERALLY JUST HAPPENED TO
ME THIS WEEK.
I STILL HAVE A LITTLE
INTRAMURAL -- AND ONE OF MY
POSTBACKPOSTBACKS, SAID I JUST
DOWNLOADED THIS PERSON'S DATA
AND WE'RE LIKE IN OUTER SPACE.
SO THAT'S THE MOST WONDERFUL
THING AND THAT'S THE WAY IT
SHOULD WORK FOR EVERYTHING.
SO TOGETHER WITH THE NSF, WHO
WAS A BIG PARTNER IN THIS, YOU
KNOW, WE HAVE TO CONTINUE TO
MAKE IT EASIER, AND MAYBE FIGURE
OUT A REWARD SYSTEM.
NOW, THOSE OF YOU WHO ARE AT
ACADEMIC CENTERS, UNIVERSITIES,
COLLEGES, SO FORTH, THINK ABOUT
YOUR TENURE PROCESS.
SO RIGHT NOW, YOU DON'T --
YOU'RE STILL COUNTING UP HOW
MANY GRANTS, HOW MANY
PUBLICATIONS, HOW MANY FALL
UNDER THE RUBRIC OF THE BEST
JOURNALS, WHATEVER THAT MEANS,
AND SO CAN YOU FIND IT IN YOUR
HEART, CAN YOU FIND IT IN YOUR
FRAMEWORK TO INCLUDE GIVING
CREDIT FOR SHARING DATA?
WOULDN'T THAT BE GREAT?
BECAUSE UNTIL WE ACTUALLY CHANGE
THE REWARD SYSTEM, IT'S GOING TO
BE A TOUGH -- BUT IF YOU CHANGE
THE REWARD SYSTEM, AS YOU ALL
KNOW IT MAKES IT A LITTLE BIT
EASIER.
AND AS YOU KNOW, WE PARTNER WITH
NSF ON SO MANY THINGS AND THIS
IS A SPACE WHERE WE'VE GOT TO
REALLY WORK TOGETHER.
AND OUR COLLEAGUES AT DOE ALSO
ARE THINKING A LOT ABOUT THIS AS
WELL.
GENERAL BARTRUM, HOW ARE YOU
TODAY?
WELCOME.
>> -- THAT IS THE WORKFORCE
DEVELOPMENT OF THOSE SIXTH,
SEVENTH AND EIGHTH GRADERS TO BE
INTERESTED IN SCIENCE EDUCATION.
HAVE YOU THOUGHT OR CONTEMPLATED
YET ON HOW THIS CARE COMMUNITY
INITIATIVE COULD HELP DEVELOP
AND GROW THAT IN THESE
COMMUNITIES THAT MIGHT NOT HAVE
ACCESS GENERALLY TO INITIATIVES
OF THAT --
>> SO THANKS FOR THAT QUESTION,
JOHN.
I THINK IT'S A PERFECT
OPPORTUNITY, ONCE THINGS MATURE,
RIGHT, FOR YOUNG PEOPLE TO BE
ENGAGED SO THAT THEY CAN LOOK
THROUGH THE MICROSCOPE, SO THAT
THEY CAN LOOK AT AN ES EKG READ,
SO THEY CAN REALLY EXPERIENCE
WHAT IT'S LIKE DAY TO DAY IN A
HEALTHCARE ENVIRONMENT, NOT AS A
PATIENT BUT FOR THE PROVIDER
PERSPECTIVE.
I THINK THERE ARE TREMENDOUS
OPPORTUNITIES THERE.
I DON'T KNOW IF THIS STILL
EXISTS, BUT LIKE A HUNDRED YEARS
AGO, I WAS A CANDY STRIPER.
THEY DIDN'T MAKE ME WEAR PINK
BUT I DID HAVE A VERY UGLY COAT
THAT I HAD TO WEAR.
AT A HOSPITAL IN BROOKLYN,
NEW YORK.
NOW, THAT'S NOT A RURAL
COMMUNITY, BUT IT WAS A VERY
UNDERRESOURCED COMMUNITY, OKAY?
AND THAT WAS THE FIRST TIME I
EVEN THOUGHT ABOUT WHAT MEDICINE
IS, YOU KNOW, OTHER THAN NOT
LAKING TO GO TO THE DOCTOR FOR A
PENICILLIN INJECTION.
SO IT'S THE SAME IDEA, BUT IN
PLACES WHERE THERE ARE NO
OBJECTIONS AT THE MOMENT.
THE OTHER THING THAT WE'RE DOING
IS WE ARE BROADENING OUT APROPOS
THE QUESTION ABOUT TRAINING AND
ANALYTICS MORE BROADLY ACROSS
THE AGENCY.
THE -- PROGRAM USED TO BE ONLY
NIGMS, NOW OVER 20 INSTITUTES
ARE INVESTING IN THE PROGRAM,
WHICH IS CURRICULUM,
DEVELOPMENT, OUTREACH TO SCHOOLS
AND SO FORTH, AND OUR --
CONTINUES TO DO OUTREACH TO
LOCAL SCHOOLS AS WELL, SO YES, I
THINK IT WOULD TIE IN PERFECTLY.
NOT SURPRISINGLY, MONICA IS
THINKING BACK TO HER GROWING UP
IN WYOMING, HOW SHE FIRST WAS
INTRODUCED TO MEDICINE.
SHE HAS AN UNCLE SHE TALKS ABOUT
ALL THE TIME WHO IS A PHYSICIAN,
WHO APPARENTLY WOULD DRIVE MANY,
MANY, MANY MILES TO SEE HIS
PATIENTS, SO SHE HAD THAT
OPPORTUNITY, ALL THE KIDS WHO
DON'T HAVE AN UNCLE WHO WAS A
PHYSICIAN.
SO YEAH, SOMETHING LIKE THAT.
THANKS.
YES, PLEASE.
>> I WANTED TO COMMENT ON THE
INTERSECTION BETWEEN THE OPEN
SCIENCE AND THE DATA SUBMISSION
POLICY FOR BASIC SCIENTISTS.
WONDERING INSTEAD OF A STICK,
YOU HAVE A CARROT, SO THAT IF
YOU CAN SUBMIT YOUR DATA INTO A
REPOSITORY, IT HAS TO BE
SOMETHING THAT'S SUSTAINABLE.
SUSTENANCE IS A BIG ISSUE.
BUT THEN COULD YOU OFFSET SOME
OF THE EXTRAORDINARY COSTS THAT
ARE GOING TO COME TO THE BURDEN
OF THE INVESTIGATOR FOR PAYING
THOUSANDS OF DOLLARS TO SUBMIT A
PAPER?
>> SO THIS GETS INTO TRICKY
TERRITORY, BECAUSE IT BUMPS UP
AGAINST BUSINESS MODELS OF
COMPANIES.
DOESN'T MEAN, THOUGH, THAT WE
SHOULDN'T EXPLORE HOW BEST TO DO
THIS, BECAUSE I AGREE WITH YOU.
YOU KNOW, PUBMED TOOK US, I
THINK, A LONG WAY TO
DEMOCRATIZING CERTAIN THINGS,
BUT OBVIOUSLY AS YOUR QUESTION
SUGGESTS, WE STILL HAVE WAYS TO
GO.
BUT WE HAVE TO DO IT IN A
REASONED WAY BECAUSE WE CAN'T
COMPROMISE THE BUSINESS MODELS
OF THE VARIOUS ORGANIZATIONS.
NOT ONLY THE FOR-PROFITS, AND I
CAN RECITE THEM TO YOU BUT I
WON'T, BUT ALSO THE MANY
PROFESSIONAL ORGANIZATIONS WHO
REALLY COUNT ON THE PUBLICATIONS
AS A MAIN PART OF THEIR REVENUE
STREAM.
AND THEN NOT FOR PROFIT BUT THEY
STILL HAVE TO SURVIVE, AND WITH
ATTENDANCE AT MEETINGS, NOT
QUITE BACK TO WHERE THEY USED TO
BE, WHICH WAS THE OTHER REVENUE
GENERATOR, THE PROFESSIONAL
SOCIETIES, THE PUBLICATIONS
BECOME EVEN MORE IMPORTANT SO
EVERY TIME YOU RAISE THE ISSUE,
PEOPLE GET CONCERNED, AND
UNDERSTANDABLY SO.
SO WE'VE GOT TO FIND A WAY OF
NAVIGATING THAT.
AND THERE MAY BE OTHER THINGS TO
DO MAYBE AT THE BACK END, BUT WE
HAVE TO IT BE TO WORK AT THAT.
BECAUSE YOU'RE RIGHT,
SOMETHING'S GOT TO GIVE, RIGHT?
THERE'S ONLY SO MUCH IN THE WAY
OF RESOURCES THAT AN
INVESTIGATOR HAS, AND IF IT'S
CONSUMED, YOU KNOW, YOU CAN HAVE
LESS RESOURCES TO DO THE ACTUAL
WORK.
>> IT'S A PROBLEM, IF YOU
PUBLISH 10 PAPERS, IT'S --
$50,000 JUST TO PUBLISH THEM.
>> WELL, FIRST OF ALL IF YOU
PUBLISH 10 PAPERS A YEAR, WOW,
THAT'S BIG.
I JUST ABOUT READ 10 PAPERS A
YEAR, BUT THAT'S REALLY GREAT,
BUT NO, YOU'RE QUITE RIGHT.
AND DIFFERENT FIELDS HAVE
SLIGHTLY DIFFERENT WAYS OF
DEALING WITH THIS, BUT THE
FUNDAMENTAL OBSERVATION IS
CORRECT, AND WE'VE GOT TO FIGURE
OUT A WAY FORWARD.
>> SOME SORT AFTER REWARDS,
YOU'RE TALKING ABOUT A REWARDS
SYSTEM, CAN NIH PROVIDE A REWARD
SYSTEM TO THE INVESTIGATOR WHO
PUTS THAT DATA IN TO PUBLISH
PAPERS.
>> AND IF THE AWARD IS MONETARY,
THEN THERE'S ONE LESS GRANT
THAT'S GOING TO GET FUNDED.
AND IF IT'S YOURS OR YOUR
COLLEAGUE'S, YOU KNOW, AND
THAT'S THE RUB, RIGHT?
BECAUSE LOOK, WE WANT AN
INFINITE -- SURE.
I DON'T THINK WE CAN GET ONE OF
THOSE.
SO WE DO HAVE TO BE CAREFUL WHAT
WE WISH FOR, BUT MAYBE THERE ARE
SOME NON-MONETARY INCENTIVES
THAT WE CAN PUT IN PLACE AS
WELL.
YES, PLEASE.
>> I JUST HAVE TO SAY THAT I
APPRECIATE THE FOCUS ON TRYING
TO GET UNDERSERVED,
UNDERREPRESENTED POPULATIONS
INTO RESEARCH.
THERE'S A LOT OF DISCUSSION
ABOUT WORKING WITH EXISTING
DATASETS.
AND I WONDER IF THERE ARE
CONSIDERATIONS FOR TRYING TO GET
THOSE POPULATIONS WHO AR HAVE BN
HISTORICALLY EXCLUDED FROM
RESEARCH, SOMEONE HAS TO BE ABLE
TO READ AND SPEAK ENGLISH AND A
LOT OF THE UNDERSERVED
POPULATIONS DON'T QUITE MEET
THAT CRITERIA, AND SO WE'RE NOT
SERVING -- WE DON'T HAVE DATA ON
THIS TYPE OF POPULATION.
SO I WONDER IF THERE'S ANY HAVE
YOU THOUGHT ABOUT TRYING TO
CREATE DATA --
>> SO I THINK MY COLLEAGUES FROM
NLM COULD SPEAK TO THIS MORE
SPECIFICALLY, BUT THERE ARE A
NUMBER OF INITIATIVES, UNDER THE
GENERAL GUISE OF MAKE THINGS
A.I./ML-READY, TO DEVELOP NEW
DATASETS THAT ENCOMPASS THE
EXACT PRINCIPLES THAT YOU'RE
MENTIONING.
BECAUSE IF YOU WANT TO TRAIN AN
ALGORITHM AND THE DATASET IS
BIASED TO BEGIN WITH, YOU LOSE.
YOU CAN'T POSSIBLY COME UP WITH
SOMETHING THAT'S GENERALIZABLE.
SO UNDERSTANDING THAT, THERE ARE
AT LEAST TWO PERHAPS MORE
INITIATIVES THAT I'M AWARE OF
THAT ARE ATTEMPTING TO DO JUST
THAT.
FOR A VARIETY OF RESOURCES, NEW
NOVEL DATASETS, BUT THEY HAVE A
PARTICULAR NUMBER OF IMPORTANT
CRITERIA, AND THAT'S ONE OF
THEM.
IS IT TRULY A REPRESENTATIVE
DATASET.
AND YOU HAVE TO, THEREFORE, AS
YOU POINT OUT, MANY OTHER
BARRIER, OBVIOUSLY, BUT THAT'S A
VERY GOOD EXAMPLE, YOU KNOW, ARE
THE MATERIALS PROVIDED IN
WHATEVER THE LANGUAGES ARE OF
THE COMMUNITY THAT'S BEING
LOOKED AT AND SO FORTH.
AND SO I THINK THAT'S THE WAY
THAT WE'RE GOING TO GET THERE.
NOW, EVENTUALLY, I'M TOLD,
ALTHOUGH I'VE NOT SEEN EVIDENCE
OF IT, EVENTUALLY I'M TOLD THAT
WE WILL HAVE ALGORITHMS TO HELP
US WITH THAT SORT OF THING, BUT
UNTIL WE DO, WE'VE GOT TO ROLL
OUR SLEEVES UP AND DO THE HARD
WORK TO MAKE SURE THAT WE DON'T
EXCLUDE PEOPLE.
YOU KNOW, AND IT'S NOT
NECESSARILY -- IT'S NOT
KNOWINGLY.
IT'S, QUOTE, FOR CONVENIENCE.
NOT UNDERSTANDING THAT YOUR
CONVENIENCE COMES BACK TO BITE
YOU BECAUSE THEN YOU DON'T HAVE
SOMETHING THAT'S AS USEFUL AS
YOU WANT IT.
>> AND IT'S NOT JUST LIKE
SURVEY -- IT'S ALSO -- PEOPLE
WHO HAVE LOW LITERACY, WE DON'T
HAVE A ROBUST DATASET SET UP ON
THAT.
>> PART OF THE SOLUTION IS GOING
TO BE AT THIS TABLE, BECAUSE
NLM, ELECTRONIC HEALTH RECORDS
AND SOME OF THE OTHER THINGS
YOU'RE REAFERRING REFERRING TO,F
THIS IS THE FOCAL POINT OF WHERE
THIS IS AT NOW.
AND I THINK WITH A NEWLY
REVITALIZED CIT, TOGETHER WITH
NLM, TOGETHER WITH WORK THAT THE
OFFICE OF DATA SCIENCE AND --
YOU KNOW, IS DOING AT NIH, THOSE
WILL BE THE PLACES THAT ARE
GOING TO HAVE TO GENERATE THE
NEW SOLUTIONS FOR PROBLEMS THAT
HAVE EXISTED FOR FAR TOO LONG.
YES.
>> DO YOU HAVE ANY -- HAVE YOU
BEEN CONSULTED BY CONGRESS OR DO
YOU HAVE ANY THOUGHTS ON
CONGRESS' CURRENT PLAN FOR
REORGANIZING NIH?
>> SO CONGRESS DOESN'T CONSULT
US.
BUT THERE HAVE BEEN -- YOU KNOW,
WE GET TO PROVIDE TECHNICAL
ASSISTAASSISTANCE WHEN THE CONGS
ASKS FOR T WE'VE HAD SOME VERY,
VERY PRELIMINARY CONVERSATIONS.
WE ARE, OF COURSE, VERY AWARE OF
THE PLANS THAT THE HOUSE ENERGY
AND COMMERCE COMMITTEE PUT
FORWARD BY CHAIR RODGERS, AND OF
COURSE THE PLAN PROPOSED BY THE
SENATE HEALTH COMMITTEE.
AND THERE'S SOME SIMILARITIES
AND THERE ARE SOME DIFFERENCES.
I DON'T THINK THIS IS GOING TO
BE A SPRINT.
I THINK THIS IS GOING TO BE A
LONGER PROCESS.
AT THE BEHEST OF CONGRESS, WE
HAVE RESTARTED THE SCIENTIFIC
MANAGEMENT REVIEW BOARD WHICH
WILL BE MEETING, I BELIEVE, IN
NOVEMBER IF I'M NOT MISTAKEN.
I DON'T KNOW IF WE'VE QUITE
LANDED ON THE DATE YET BUT I
THINK IT'S NOVEMBER.
SOME OF YOU MAY REMEMBER, JOHN
MAY REMEMBER, SCIENTIFIC
MANAGEMENT REVIEW BOARD IS
DESIGNED TO PROVIDE ADVICE TO
THE NIH DIRECTOR AND TO THE
CONGRESS ABOUT THE
ORGANIZATIONAL HEALTH OF NIH AND
WAYS IT CAN BE POTENTIATED.
SO I THINK THERE'S GOING TO BE A
LOT OF CONVERSATION ABOUT THIS.
AND A LOT OF DEBATE.
AND WE HAVE TO BE OPEN TO ANY
AND ALL POSSIBILITY BECAUSE AT
THE END OF THE DAY, WE WANT TO
BE ABLE TO MAKE PEOPLE HEALTHY
AND IF BY REJIGGERING THINGS
HERE, W IT CAN BE SHOWN THAT WE
CAN DO THAT, LET'S DO IT.
I THINK I'VE WORN OUT MY
WELCOME, I'M GETTING THE HIGH
SIGN.
THANK YOU FOR ALLOWING ME TO
SPEND A FEW MINUTES WITH YOU
THIS MORNING.
I REALLY APPRECIATE IT, AND I
HOPE THE REST OF THE MEETING
GOES EXCEEDINGLY WELL.
THANK YOU.
>> GOOD MORNING, EVERYONE.
I'D JUST LIKE TO FOLLOW UP A
LITTLE BIT WITH -- BEFORE I GET
INTO THIS PRESENTATION WITH
DR. TABAK'S PRESENTATION.
YOU'LL NOTICE ON THE AGENDA
TOMORROW THAT WE DO HAVE SEAN
MOONEY, SUSAN, AND STEVE SHERRY
WHO WILL BE GIVING A JOINT
PRESENTATION FOLLOWED BY A
STRATEGIC DISCUSSION ON THE
FUTURE OF NLM.
SO IT WILL BE A NICE FOLLOW-UP
TO SOME OF THE HARMONIES HE
SPOKE OF THIS MORNING THAT WE
CAN DISCUSS FURTHER.
SO I'D LIKE TO -- JUST THIS
MORNING TO GIVE A RECAP OF A
DISCUSSION WE HAD THAT WE HAD OK
GROUPS AND ASKING FOR A
RECOMMENDATION TOWARD THE END OF
THE PRESENTATION.
NOW I GET THE CHANCE TO FOOL
AROUND WITH THESE -- OKAY.
SO JUST TO REMIND YOU THAT THE
ROLE OF THE BOARD OF REGENTS IS
TO ADVICE, CONSULT AND MAKE
RECOMMENDATIONS ON ACTIVITIES
CARRIED OUT BY AND THROUGH THE
NATIONAL LIBRARY OF MEDICINE, AS
WELL AS THE POLICIES THAT AFFECT
THOSE ACTIVITIES.
AND IN GENERAL, YOU'RE REALLY
SERVING AS ADVISORY BOARD TO
NLM, NIH AND HHS.
AND UNDER THE BOARD OF REGENTS,
THERE ARE -- THERE'S AN
OPPORTUNITY FOR SUBCOMMITTEES
AND ALSO AD HOC WORKING GROUPS
TO FORM BASED ON THE NEEDS OF
THE NLM AND ALSO WITHIN THE
BOARD OF REGENTS JURISDICTION.
THERE ARE BASICALLY TWO TYPES OF
GROUPS THAT CAN FORM ACCORDING
TO NIH POLICY.
THERE CAN BE SUBCOMMITTEES OR
WORKING GROUPS.
THE MEMBERSHIP OF SUBCOMMITTEES
ARE SELECTED BY THE MEMBERS OF
THE BOARD OF REGENTS.
THEY COME FROM THE BOARD OF
REGENTS.
SO THIS IS ONLY A BOARD OF
REGENTS GROUP.
THERE CAN BE A STANDING OR AD
HOC SUBCOMMITTEE.
THE GROUP REPORTS TO THE BOARD
OF REGENTS GROUP OR THE ADVISORY
COMMITTEE OR THE FEDERAL
OFFICIAL IN THIS CASE IT WOULD
BE THE DIRECTOR OF THE NATIONAL
LIBRARY OF MEDICINE.
AND SUBGROUPS CAN PROVIDE ADVICE
OR RECOMMENDATIONS, AND THESE
TYPES OF DELIBERATIONS WITHIN A
SUBCOMMITTEE ARE OPEN IN THE
PUBLIC SESSION OF THE BOARD OF
REGENTS.
' MEETINGS.
THERE CAN ALSO BE WORKING
GROUPS, AND THESE ARE SELECTED
OR CHARTERED BY IN THIS CASE THE
BOARD OF REGENTS AND A FEDERAL
OFFICIAL, BUT THESE WORKING
GROUPS CAN INCLUDE NON-MEMBERS
OF THE COMMITTEE.
SO WE CAN HAVE INDIVIDUALS FROM
WITHIN THE GOVERNMENT, NIH, OR
ACADEMIA OR WHEREVER WE WOULD
NEED THEM TO COME FROM.
THESE GROUPS HAVE MORE OF A
FOCUS, THEY'RE TEMPORARY, THEY
ARE CHARTERED BY THE ADVISORY
COMMITTEE.
THEY PROVIDE ADVICE AND REPORT
FINDINGS.
THEY DO NOT PRESENT
RECOMMENDATIONS TO THE BOARD OF
REGENTS.
BUT DELIBERATIONS OF THESE
GROUPS DO NOT HAVE TO BE PUBLIC
WHILE THEY'RE MEETING, BUT THEIR
FINDINGS SHOULD BE MADE PUBLIC
DURING THE OPEN SESSIONS OF THE
MEETINGS.
SO JUST TO GIVE A BRIEF HISTORY
ONCE AGAIN OF THE WORKING GRO
GROUPS, THERE WERE FOUR WORKING
GROUPS THAT WERE ESTABLISHED IN
2016 TO SUPPORT THE DEVELOPMENT
AND IMPLEMENTATION OF THE NLM
STRATEGIC PLAN.
THESE GROUPS WERE THE RESEARCH
FRONTIERS, PUBLIC SERVICES
COLLECTIONS AND I THINK THE
STRATEGIC PLANNING GROUP,
STRATEGIC INITIATIVES.
IN 2013, THE PUBLIC SERVICES AND
LITERATURE COLLECTIONS GROUPS
WERE MERGED JUST BECAUSE NOT
ONLY THE SIZE OF THE MEMBERS OF
THE GROUPS BUT ALSO THE TOPICS.
AND THEN IN 2024, WE DISCUSSED
SUNSETTING THE GROUPS AND
FORMING NEW GROUPS, BUT WE
WANTED TO DISCUSS WITH THE BOARD
OF REGENTS HOW WE SHOULD MOVE
FORWARD.
ALSO IN 2022, THE OFFICE OF
STRATEGIC INITIATIVES CONDUCTED
AN EVALUATION OF THE BOARD OF
REGENTS' WORKING GROUPS, AND
OVERALL THEY FOUND THAT THE
GROUPS ENHANCE THE
COLLABORATIONS, THEY HELP HELP O
MAKE IMPORTANT DECISIONS AND
THEIR WORK IS VERY EFFECTIVE AND
BENEFICIAL AND SHOULD CONTINUE.
THERE WERE ALSO MANY SUCCESSES,
CHALLENGES, AND ALSO
RECOMMENDATIONS WHICH REALLY
FOCUSED ON CLARIFYING THE
PURPOSE OF THE WORKING GROUPS
AND MAKING SURE THAT THE GROUPS
HAD CLEAR PRIORITIES.
THESE WORKING GROUPS WERE
DIFFERENT THAN THE NIH
DEFINITION THAT I PRESENTED
EARLIER OF WORKING GROUPS.
SO THESE BOARD OF REGENTS
WORKING GROUPS WERE ONLY
COMPOSED -- THEY WERE MORE LIKE
BREAKOUT SESSIONS OR DISCUSSION
GROUPS.
SO ALL IN ALL WHAT WE DISCOVERED
WAS REALLY NEEDED WERE GROUPS
WITH CLEAR CHARGES AND UNIQUE
GOALS.
SO AT THE LAST BOARD OF REGENTS
MEETING, WE HAD A DISCUSSION OF
THE ROLE OF THE GROUPS AS WELL
AS WHETHER OR NOT THE GROUPS
SHOULD CONTINUE.
AND AT THAT TIME, THE BOARD
INDICATED THAT THERE IS SUPPORT
FOR SPECIFIC TIME-LIMITED
WORKING GROUPS ON AN AS-NEEDED
BASIS.
THAT RECOMMENDATION OR
INFORMATION TO BE SHARED.
THE BOARD ALSO SUGGESTED THAT
THERE BE RECOMMENDATIONS OR
INFORMATION THAT SHOULD BE
SHARED AHEAD OF THE MEETINGS TO
HELP GUIDE THE DISCUSSIONS.
THAT NLM SHOULD IDENTIFY TOPICS
FOR THE BOARD OF REGENTS ADVICE,
EXPERTISE OR COLLABORATION.
AND THIS WOULD REALLY HELP TO
FACILITATE STRATEGIC THINKING
FROM ALL THE BOARD MEMBERS, SO
WE WOULDN'T HAVE SEPARATE
DISCUSSION OR BREAKOUT GROUPS
ONGOING DURING THE MEETING
WHEREBY ONLY A FEW PEOPLE WOULD
BE ABLE TO PARTICIPATE IN A
SPECIFIC TOPIC.
AND THAT THIS WOULD HELP ALSO TO
MEET THE NEED FOR DELIBERATIONS
AT THE PUBLIC MEETING.
AND SO ONE EXAMPLE, YOU'LL SEE
ABOUT THIS LATER.
SO WE DISCUSSED THIS WITHIN
LEADERSHIP AND HOW TO MOVE
FORWARD, AND WE FELT THAT MOVING
FORWARD, THAT THE BOARD GROUP
DISCUSSIONS SHOULD BE ON A
SPECIFIC TOPIC AT BOARD
MEETINGS, AND THAT THERE SHOULD
BE TIME LIMITED WORKING GROUPS
ON SPECIFIC TOPICS THAT WOULD
HAVE SPECIFIC OBJECTIVES AND
REPORT THEIR FINDINGS TO THE
BOARD OF REGENTS.
ITHIS WOULD ALLOW THE MEMBERS TO
DELIBERATE AND MAIM
RECOMMENDATIONS TO THE NLM
DIRECTOR AND THEN THE DIRECTOR
COULD CONSIDER THOSE
RECOMMENDATIONS AND MAKE A
DECISION.
THE SUBCOMMITTEES OR DISCUSSION
OR BREAKOUT GROUPS COULD ALSO BE
CONSIDERED IF NEEDED.
SO I WANTED TO PRESENT TO YOU
TWO INITIAL TOPICS FOR THE
WORKING GROUP.
THE FIRST IS GOING TO BE THE NLM
OF FUTURE AND RESEARCH
ENTERPRISE SERVICES AT NIH,
WHICH IS THE DISCUSSION -- THE
STRATEGIC DISCUSSION THAT WE'RE
HOPING TO HAVE WITH ALL OF YOU
TOMORROW.
AND THEN THE FIRST WORKING GROUP
THAT WE'RE GOING TO PROPOSE IS
THE SEQUENCE READ ARCHIVE
SUSTAINABILITY WORKING GROUP.
BECAUSE THIS WOULD BE A WORKING
GROUP UNDER THE NIH DEFINITION
OF A WORKING GROUP, IT WOULD
INCLUDE BOARD MEMBERS AS WELL AS
NON-BOARD MEMBERS.
SO THE SEQUENCE READ ARCHIVE IS
THE MARGINNEST PUBLI LARGEST PUE
REPOSITORY FROM ALL KINGDOMS OF
LIFE.
IT WAS ORIGINALLY RELEASED IN
2008 AND IT CONTAINS ABOUT
31 MILLION SEQUENCE READ ARCHIVE
DATA RECORDS.
IT'S MAINTAINED BY THE NATIONAL
CENTER FOR BIOTECHNOLOGY
INFORMATION AT NLM, AND IT'S
ALSO A MEMBER OF THE
INTERNATIONAL NUCLEOTIDE
SEQUENCING DATABASE
COLLABORATION.
THERE'S A MULTIYEAR STRATEGIC
INFORMATION EFFORT UNDERWAY TO
ENHANCE THE SUSTAINABILITY OF
THE SEQUENCE READ ARCHIVE AND
THERE ARE THREE INITIATIVES
UNDER THIS.
THE FIRST OF WHICH IS TO ENGAGE
STAKEHOLDERS AND USERS TO
REIMAGINE THE SEQUENCE READ
ARCHIVE DATA MODELS TO MODERNIZE
ITS ARCHITECTURE AND ALSO TO
BUILD AN INTEGRATED CLOUD
ENVIRONMENT FOR DATA PROCESSING
MANAGEMENT AND DISSEMINATION.
AND IN THE FIGURE ON THE RIGHT,
YOU CAN SEE THE HUGE INCREASE IN
THE AMOUNT OF DATA IN SRA, BOTH
ON THE PUBLIC ACCESS SIDE AS
WELL AS THE SIDE IN WHICH
INDIVIDUALS MUST APPLY TO ACCESS
THE DATA THROUGH CONTROLLED
ACCESS.
SO BEFORE I MOVE ON TO THIS
SLIDE, I WOULD LIKE TO MENTION
THAT THIS NEW EFFORT FOR THE
SEQUENCE READ ARCHIVE WOULD HELP
TO ESTABLISH AN ECOSYSTEM THAT
ADDRESSES MANY THINGS, INCLUDING
SUSTAINABILITY, APPLICABILITY,
ACCESSIBILITY AND USABILITY,
CONNECTIVITY AND GOVERNANCE .
THERE ARE SEVERAL TOPICS THAT
THIS WORKING GROUP COULD COVER
ON THE SRA SUSTAINABILITY.
THIS INCLUDES MAXIMIZING THE
VALUE OF SRA TO THE SCIENTIFIC
COMMUNITY.
IDENTIFYING STAKEHOLDER
ENGAGEMENT STRATEGIES TO BUILD
CONSISTENT CONSENSUS AND ALSO
ENSURE THAT THE COMMUNITY NEEDS
ARE BEING MET AND UNDERSTOOD.
AS THIS IS HAPPENING WITH THE
MODERNIZATION OF SRA, AND ALSO
COORDINATING WITH OTHER NIH
ACTIVITIES AT THE ENTERPRISE
LEVEL TO DEMONSTRATE
ACCOUNTABILITY TO THE
MODERNIZATION PROCESS.
THERE ARE SOME OTHER ACTIVITIES
THAT ARE BEING DISCUSSED AT NIH
RELATED TO SUSTAINABILITY.
AND SO THESE EFFORTS WOULD BE
COMPLEMENTARY AND CONSISTENT
WITH THAT.
SO OUR RECOMMENDATION OR WHAT
WE'RE ASKING THE BOARD FOR IS A
RECOMMENDATION ON WHETHER OR NOT
NLM SHOULD ESTABLISH AN NLM
BOARD OF REGENTS SRA
SUSTAINABILITY WORKING GROUP.
NOW, IF THIS WORKING GROUP IS TO
MOVE FORWARD, THE NEXT STEPS
WOULD BE TO ESTABLISH A CHARTER
WITH A CLEAR CHARGE TO THE GROUP
TO ALSO INCLUDE WHAT THE GOALS
AND OBJECTIVES OF THIS GROUP
WOULD BE, AS WELL AS A TIMELINE
FOR COMPLETION, IDENTIFY THE
CHAIRS AND THE MEMBERS,
FACILITATE MEETINGS, AND THEN
ONCE THE FINDINGS OF THIS
GROUP -- ONCE THE GROUP'S WORK
IS COMPLETE, THEY WOULD THEN
REPORT THEIR FINDINGS BACK TO
THE BOARD OF REGENTS.
THE BOARD OF REGENTS WOULD
CONSIDER AND DISCUSS THE
FINDINGS AND THEN MAKE
RECOMMENDATION TO THE NLM
DIRECTOR ON THE SEQUENCE READ
ARCHIVE SUSTAINABILITY EFFORTS.
AND SO OUR QUESTION TO YOU, TO
THE BOARD MEMBERS, IS SHOULD NLM
ESTABLISH AN SRA SUSTAINABILITY
WORKING GROUP?
AND I CAN ALSO ALLOW MY
COLLEAGUES, KIM PRUITT OR
VALERIE SCHNEIDER, TO CHIME IN
IF THEY HAVE ANYTHING ELSE TO
ADD WITH REGARDS TO THE SRA
GROUP.
>> I ACTUALLY HAVE JUST A
QUESTION BECAUSE THE WORKING
GROUP DEFINITION AS YOU FRAMED
IT INCLUDES NON-NLM BOR MEMBERS
AND I'M WONDERING IN THIS
CONTEXT, HAVE YOU THOUGHT ABOUT
WHO THAT WOULD BE FOR THIS
PARTICULAR --
>> WE DON'T HAVE A LIST YET
BECAUSE WE FIRST WOULD NEED TO
DETERMINE IF THIS IS SOMETHING
THAT THE BOARD OF REGENTS WOULD
NEED.
I'M SURE PROBABLY VALERIE AND
KIM PROBABLY HAVE SOME NAMES IN
MIND, BUT I THINK WHAT'S
IMPORTANT ABOUT THIS GROUP IS
THAT IT WOULD INCLUDE BOTH A FEW
BOARD MEMBERS AND ALSO NON-BOARD
MEMBERS SO IT COULD ALSO INCLUDE
PEOPLE FROM NIH AND OUTSIDE OF
THE FEDERAL GOVERNMENT.
>> SO PERCEPTUALLY ON WORKING
GROUPS, THE BOARD OF REGENTS,
ANYTHING LIKE THAT, THOSE ALL
SEEM TO MAKE PERFECT SENSE TO
ME.
THE QUESTION THAT I'VE
CONTEMPLATED IN MY HEAD IS, WHAT
ARE THE SRA CHALLENGES OR GAPS
THAT THE WORKING GROUP WOULD BE
ADDRESSING?
BECAUSE IT SEEMS TO BE SUCH A
BROAD SCOPE OF THE NRM BOARD SRA
SUSTAINABILITY WORKING GROUP.
IS THIS ENVISIONED TO BE AN
ONGOING STANDING WORK THAT WOULD
CONTINUE AND PROVIDE INPUT OVER
TIME OR IS IT A ONE REPORT
WORKING ON A SPECIFIC FOCUS
CHALLENGE OR GAP?
>> I THINK INITIALLY IT WOULD BE
A TIME LIMITED GROUP TO REALLY
COVER A FEW ISSUES THAT I CAN GO
INTO IN A LITTLE MORE DETAIL,
BUT FIRST IS SUSTAINABILITY, AND
THIS WOULD INCLUDE MAPPAGING
SOMANAGING SOMEOF THE STORAGE CH
REGARDS TO GROWING THE DATASET,
APPLICABILITY, WHICH WOULD BE
DATA THAT'S FIT TO SERVE VARIOUS
BIOMEDICAL USE CASES, AS WELL AS
THE TOOLS THAT ARE CAPABLE OF
OPERATING ON THE DATA AT SCALE.
ACCESSIBILITY AND USABILITY,
THIS GETS MORE INTO THE FAIRNESS
OF THE DATA FOR USERS IN THE
CLOUD AND ALSO ON NON-CLOUD
PLATFORMS.
NON-CLOUD APPLICATION.
CONNECTIVITY, WHICH WOULD
INCLUDE THE INTEGRATION OF THE
DATA WITH OTHER WIE O BIOPL BIO,
AND ALSO OTHER PLATFORMS.
AND THEN GOVERNANCE.
THIS REFERS TO THE MANAGEMENT
AND SHARING OF DATA FROM OUR
POLICIES AND PRACTICES, AND ALSO
ENSURING COMPLIANCE,
INTEROPERABILITY AND INTEGRITY.
AND VALERIE, I DON'T KNOW IF YOU
WANT TO ADD ANYTHING?
>> [INAUDIBLE]
>> I'M JUST TRYING TO UNDERSTAND
THE SCOPE OF THE CHALLENGE.
>> WE HAVE OUR INITIAL
TRANSFORMATION EFFORT GOING ON
WITH THE SRA -- IN TERMS OF --
[INAUDIBLE] THE RELATIONSHIP
OF -- ANALYSES ARE BEING DONE
AND -- [INAUDIBLE]
>> SO I'M IN FAVOR OF THIS
ASSUMING THE CHARGE IS SPECIFIC
ABOUT WHAT THE MEMBERSHIP --
WHAT THE OUTCOME SHOULD BE.
WHAT I WANT TO ASK ABOUT IS WHAT
OTHER STAKEHOLDER GROUPS ARE
INVOLVED OR BEING CONSULTED IN
THIS PROCESS?
>> VALERIE, DID YOU --
>> SO LOOKING AT POTENTIAL OTHER
GROUPS THAT MIGHT BE ABLE TO
EXTEND REPRESENTATION TO THIS
BOARD OF REGENTS GROUP, WE ARE
LOOKING AT FOLKS FROM DIFFERENT
COHORTS OF -- [INAUDIBLE] DATA
TYPES.
WE ARE ALSO CONSIDERING WHETHER
TO ENGAGE WITH MEMBERS OF --
THAT ARE ALSO GENERATING THE
PLATFORMS ON WHICH THE DATA COME
FROM.
AS WELL AS DIFFERENT [INAUDIBLE]
OF THE DATA.
SO I THINK MULTIFACETED IN THAT
WAY.
>> ANY CONCERNS YOU WOULD BRING
FORWARD?
>> SO ON THAT PARTICULAR --
[INAUDIBLE] KIND OF LIKE THE
GUINEA PIG --
>> AS I MENTIONED, NIH --
ENTERPRISE NIH IS DISCUSSING
SUSTAINABILITY OF RESOURCES AT A
LARGER SCALE, AND SO THIS EFFORT
WOULD DEFINITELY FALL UNDER AND
BE CONSISTENT WITH THOSE OTHER
ONES THAT ARE GOING ON AND
BEING --
>> [INAUDIBLE]
[NO MIC]
>> HEARING NO CONCERNS, WE'LL
TAKE THIS TO MEAN THAT THE BOARD
IS RECOMMENDING THAT NIH CREATE
A WORKING GROUP AROUND THE
SUSTAINABILITY [INAUDIBLE].
>> [INAUDIBLE]
>> SRA BEING OUR LARGEST ARCHIVE
AND DEALING WITH THE LARGEST
AMOUNT OF DATA GROWTH -- SOABTED
ASSOCIATED WITH THIS MULTIYEAR
SUSTAINABILITY EFFORT
[INAUDIBLE]
>> CURRENTLY TAKEN UP BY THE
SRA, WHAT PROPORTION OF THE --
STORAGE?
YOU SAID 80% OF THE COST STORAGE
OR 40% THAT THE SRA PICKS UP?
>> YES, I DON'T KNOW THE --
BUT -- JUST THE PRIMARY COST FOR
THE SRA.
>> IS IT NOT 80 OR 90% OF THE
COST RIGHT NOW OR --
>> I DON'T HAVE A PERCENT TO
SHARE WITH YOU, BUT SRA --
CONTINUES TO [INAUDIBLE] HAS
BECOME AN INTEGRAL PART OF
RESEARCH ACTIVITIES AND
[INAUDIBLE] RAW DATA -- DIRECTLY
OFF THE SEQUENCING MACHINE --
THAT RAW DATA IS LARGE, SO WE
HAVE PETABYTES OF DATA WE'RE
STORING AND THAT CONTINUES TO
ESCALATE AT A RATE THAT WE DON'T
COME UP WITH IN OUR DATA
MODEL -- FORMAT ANOTHER SORT OF
APPROACH --
>> SO THIS WOULD ALSO CONSIDER
DISCUSSIONS ABOUT COMPRESSION --
FOR EXAMPLE, [INAUDIBLE] SO I
THINK THAT'S -- VERY MUCH NEE
NEEDED --
>> IT'S A CRITICAL RESOURCE.
>> NLM LEADERSHIP WILL
DELIBERATE ON YOUR
RECOMMENDATION AND WE'LL GET
BACK TO YOU.
THANK YOU.
>> SO THANK YOU, DINA.
THE NEXT ITEM -- SO WE'RE
SUPPOSED TO GATHER FOR A GROUP
PHOTO IN THE LOBBY.
AND AFTER THAT, WE HAVE OUR
LUNCH BREAK FROM 12:00 TO 1:00.
SO NEXT UP WE HAVE OUR
PRESENTATION OF THE
ENVIRONMENTAL HEALTH INFORMATION
PARTNERSHIP, AND MS. STACEY
ARNESEN, THE CHIEF OF THE
ENGAGEMENT BRANCH AT THE NLM,
WILL INTRODUCE THE SPEAKER.
>> WELL, THANK YOU.
ACTUALLY WE'RE GOING TO TAG TEAM
IT.
I'M GOING TO SPEAK FIRST, AND
THEN I AM GOING TO HAVE
DR. GABRIEL IBARRA-MEJIA SPEAK
AS WELL AND THEN I WILL WRAP IT
UP.
AS MENTIONED, I AM CHIEF OF THE
ENGAGEMENT BRANCH AND THE USER
SERVICES AND COLLECTION DIVISION
UNDER DIANE BA BABSKI'S LEADERS.
I'M REALLY PLEASED TO BE TALKING
TO YOU TODAY ABOUT NLM'S OLDEST
AND LONGEST SERVING ENGAGEMENT
ACTIVITY, AND THAT'S THE
ENVIRONMENTAL HEALTH INFORMATION
PARTNERSHIP.
THIS WAS ESTABLISHED BACK IN
1991, ACTUALLY I WAS HERE THEN,
IN 1991, WHICH IS A LITTLE
SCARY, VERSUS THE TOXICOLOGY
INFORMATION OUTREACH PANEL.
AND THIS WAS TO PROVIDE ACCESS
TO NLM'S ONLINE DATABASES IN
TOXICOLOGY AND ENVIRONMENTAL
HEALTH, AND REACHING OUT TO
INSTITUTIONS COMPRISING
SUBSTANTIAL MINORITY
POPULATIONS.
AND INITIALLY WE WORKED WITH
SEVERAL HISTORICALLY BLACK
COLLEGES AND UNIVERSITIES OR
HBCUs, AND OVER TIME, THE
PARTNERSHIP EXPANDED TO OTHER
INSTITUTIONS, AND ALSO AIMED TO
PROVIDE ENVIRONMENTAL HEALTH
INFORMATION TO THE COMMUNITIES
IN WHICH THE INSTITUTIONS WERE
LOCATED.
WE'RE GOING TO BE HEARING MORE
ABOUT THAT SOON.
SO THIS INITIATIVE ACTUALLY
STEMMED FROM A CHANGE IN THE
MISSION OF NLM IN 1988.
A SENATE APPROPRIATIONS
COMMITTEE AMENDMENT TO THE NLM'S
FUNDING AUTHORIZATION MANDATED
THAT NLM'S MISSION BE EXPANDED
TO REACH ALL AMERICAN HEALTH
PROFESSIONALS WHEREVER LOCATED,
SO THAT THEY WILL BE ABLE TO
TAKE ADVANTAGE OF NLM'S
INFORMATION SERVICES.
SO WHEN FOUNDED, IN FACT, IN
1991, AS I SAID IT WAS THE
TOXICOLOGY INFORMATION OUTREACH
PANEL.
WE HAD NINE MEMBERS.
THE INSTITUTIONS WERE CHARLES
DREW UNIVERSITY, FLORIDA A & M,
HOWARD UNIVERSITY, MA H TEXAS
SOUTHERN, TUSKEGEE, THE
UNIVERSITY OF ARKANSAS PINE
BLUFF, AND XAVIER UNIVERSITY IN
LOUISIANA.
THIS FOCUSED EFFORT BY NLM
ACTUALLY PREDATED BY THREE YEARS
THE EXECUTIVE ORDER ISSUED IN
1994 BY THEN PRESIDENT CLINTON,
REQUIRING ALL FEDERAL AGENCIES
TO DEVELOP A COMPREHENSIVE
STRATEGY FOR MAKING
ENVIRONMENTAL JUSTICE A PART OF
THEIR DECISION-MAKING AND
OPERATIONS.
AND THE FOCUS OF THIS WAS TO
LOOK AT ENVIRONMENTAL AND HUMAN
HEALTH EFFECTS OF FEDERAL
ACTIONS ON MINORITY AND LOW
INCOME POPULATION WIS WITH THE L
OF ACHIEVING ENVIRONMENTAL
PROTECTION FOR ALL COMMUNITIES.
SO THE PANEL FIRST MET IN AUGUST
OF 1991, AND AS I SAID, THERE
WERE NINE HBCUs PARTICIPATING
AND THEY WERE ALL MEMBERS OF THE
ASSOCIATION OF MINORITY HEALTH
PROFESSION SCHOOLS.
THEN IN 2004, WE CHANGED THE
NAME OF THE PROGRAM TO THE
ENVIRONMENTAL HEALTH INFORMATION
OUTREACH PROGRAM.
AND THIS REFLECTED A GROWING
NUMBER OF INSTITUTIONS THAT WERE
PARTICIPATING, GROWING FOCUS NOT
JUST IN TOXICOLOGY BUT
BROADENING TO ENVIRONMENTAL
HEALTH, AND ALSO A FOCUS OF
DOING COMMUNITY OUTREACH FOR THE
INSTITUTION'S ALSO WORKING IN
THEIR COMMUNITIES AND WE'LL TALK
MORE ABOUT THAT IN A LITTLE BIT.
THEN IN 2009, WE CHANGED THE
NAME AGAIN TO THE ENVIRONMENTAL
HEALTH INFORMATION PARTNERSHIP.
TO REFLECT WE HAD A TRUE
PARTNERSHIP BETWEEN THE NLM
INSTITUTIONS AND THE
INSTITUTIONS WITHIN THEIR
COMMUNITIES.
SO WHAT'S THE MISSION OF ENHIP?
CURRENTLY OUR FOCUS IS TO
ENHANCE HBCUs, TRIBAL COLLEGES
AND UNIVERSITIES, HISPANIC
SERVING INSTITUTIONS AND LOWER
RESOURCED ACADEMIC INSTITUTIONS
COMMITTED TO SERVING MINORITIES
AND UNDERREPRESENTED POPULAT
POPULATIONS.
TO HELP THEM TO ACQUIRE, USE AND
DISSEMINATE ENVIRONMENTAL HEALTH
INFORMATION AND TO PROMOTE AND
EXPAND DATA-DRIVEN SCIENCE TO
FACILITATE HEALTH EQUITY IN ALL
COMMUNITIES.
AND YOU CAN SEE THE LIST UP
THERE WHAT WE'RE FOCUSING ON.
I WOULD LIKE TO TAKE A MOMENT TO
ACKNOWLEDGE THAT IN 2019 AT NLM
WE MADE SOME CHANGES, AND WE
DISCONTINUED A NUMBER OF OUR
SMALLER SPECIALTY RESOURCES IN
SPECIFIC SUBJECT AREAS INCLUDING
TOXICOLOGY AND A ENVIRONMENTAL
HEALTH WITH INSTEAD FOCUSING ON
OUR LARGER RESOURCES WHICH ALSO
COVERED THOSE AREAS SUCH AS
PUBMED, PUBMED CENTRAL,
MEDLINEPLUS, ET CETERA.
BUT WE DISCONTINUED, WE HAD AT
LEAST A DOES SPECIA DOZEN SPECIY
RESOURCES AND WE LEFT THOSE IN
THE HANDS OF OTHER GOVERNMENT
AGENCIES SUCH AS THE NATIONAL
INSTITUTE OF ENVIRONMENTAL
HEALTH SCIENCES AT NIH, THE
ENVIRONMENTAL PROTECTION AGENCY,
THE TOXIC SUBSTANCES AND DISEASE
REGISTRY TO NAME A FEW.
OF COURSE WHAT WE'VE BEEN DOING
NOW IS EXPANDING OUR SCOPE IN
OTHER AREAS LOOKING AT AS I SAID
DATA SCIENCE, OPEN SCIENCE AS WE
HEARD THIS MORNING LOOKING AT
HEALTH DISPARITIES SO WE CAN
PROMOTE HEALTH EQUITY AS WELL AS
SUPPORT HEALTH LITERACY AND DATA
LITERACY EFFORTS IN THE
COMMUNITIES.
SO WHAT WE'RE GOING TO DO NOW IS
WATCH A SHORT VIDEO THAT
DESCRIBES THE EVOLUTION OF ENHIP
HEARING FROM THOSE AROUND FROM
THE VERY BEGINNING.
>> ENVIRONMENTAL RACISM IS A
TERM THAT WAS COINED DURING THE
CLINTON ADMINISTRATION AND
REALLY TALKED ABOUT THE IMPACT
OF THE ENVIRONMENT ON PEOPLE OF
COLOR BASED NOT BECAUSE OF THEIR
RACE BUT BASED ON THEIR RACE
WHERE THEY LIVE, WHERE THEY
WORK, WHERE THEY PLAY AND FOR
MANY WHERE THEY WORSHIP.
IT WAS BEYOND ENVIRONMENTAL
RACISM.
IT WAS ENVIRONMENTAL JUSTICE.
THAT INCLUDED --
>> THE TOXICOLOGY INFORMATION
OUTREACH PROGRAM AT THE NATIONAL
LIBRARY OF MEDICINE, PROGRAM
PROVIDED TO COMPUTER HARDWARE
AND SOFTWARE AS WELL AS TRAINING
FOR OUR STAFF AND OUR RESPECTIVE
MEMBER INSTITUTIONS.
>> THE GROWTH OF ENHIP TO
INCLUDE OTHER COMMUNITIES OF
COLOR CAME OUT OF AN OPPORTUNITY
TO REFLECT ON OUR COMMON
CHALLENGES GROUNDED IN THE
ENVIRONMENTAL JUSTICE MOVEMENT.
WE'RE LOCATED IN COMMUNITIES
THAT HAVE TREMENDOUS NEEDS AND
CATO DISCUSS ISSUES HAPPENING IN
OUR COMMUNITY.
WHAT WE FIND IS THERE ARE COMMON
CHALLENGES AND I'M CONVINCED
THAT THE COMMON CHALLENGES ALSO
BRING COMMON SOLUTIONS.
>> WE FELT THAT MARRYING
ENVIRONMENTAL AND TOXICOLOGICAL
TRAINING WITH OUR MEDICAL
TRAINING PROVIDED A BETTER
DOCTOR, DENTIST, PHARMACISTS AND
HE VETERINARIANS FOR AMERICA AND
I THINK THAT'S WHAT ENHIP HAS
DONE AND CONTINUES TO DO IN
EXPANDING OPPORTUNITIES FOR
HEALTHCARE PRO FIGURESSALS
PROVIDING TRAINING THAT THEY
WOULD NOT NORMALLY GET FROM
TRADITIONAL HEALTH SCIENCES
PROGRAM.
>> SO I HOPE THE VIDEO PROVIDED
GOOD OVERVIEW OF THE PROGRAM AND
THE PURPOSE AND THE NEED FOR
AWARENESS AND TRAINING IN NLM
RESOURCES AND HOW THEY HAVE BEEN
USED AND CAN BE USED BY THE
SCHOOLS PARTICIPATING IN ENHIP
OVER THE YEARS.
AS I MENTIONED WE STARTED WITH
NINE SCHOOLS AND THIS CAN SEE
FROM THIS MAP NOW WE'RE NOW UP
TO 23 PARTICIPATING SCHOOLS IN
17 STATES.
WE STARTED WITH INITIAL CLUSTER
WITH THE SOUTH AND NOW HAVE
EXPANDED ACROSS THE NATION, WE
ACTUALLY EVEN HAVE PARTICIPANT
FROM PUERTO RICO, ALASKA AND
MOST RECENTLY HAWAII.
HERE'S A LIST OF THE
PARTICIPATING INSTITUTIONS JUST
IN ALPHABETICAL ORDER.
AS YOU CAN SEE HERE, SO
EVERYTHING FROM BENEDICT COLLEGE
TO XAVIER UNIVERSITY IN
LOUISIANA.
MEMBERS TO ENHIP ARE TYPICALLY
FACULTY MEMBERS IN ENVIRONMENTAL
SCIENCE, PUBLIC HEALTH OR
RELATED BIOMEDICAL FIELD AND
THEY REALLY SERVE AS A
CONNECTION BETWEEN NLM AS WELL
AS TO THEIR DEPARTMENTS TO OTHER
FACULTY TO STUDENTS AND THEN
ULTIMATELY TO THE COMMUNITIES.
THIS IS JUST A SMALL PERCENTAGE
OF SCHOOLS THAT SERVE MINORITY
AND UNDERREPRESENTED
POPULATIONS.
THERE ARE ACTUALLY OVER 300
MINORITY SCHOOLS SERVING -- THAT
OFFER FOUR-YEAR DEGREES AND EVEN
MORE THAT OFFER
TWO-YEAR DEGREES.
SO THIS IS JUST A SAMPLING.
I JUST WANT TO SPEND A MINUTE OR
TWO TALKING ABOUT HOW WE WORK TO
MEET OUR OBJECTIVES AND SOME OF
THE WORK THAT WE HAVE DONE TO
GET INTO THE COMMUNITIES FUNDING
THE INSTITUTIONS THAT ARE
MEMBERS OF ENHIP TO WORK WITH
THEIR COMMUNITIES AND STRENGTHEN
THOSE CONNECTIONS.
SO OVER THE PAST 20 YEARS, WE
HAVE FUNDED NEARLY 150 SMALL
PROJECTS, WE AR HAVE FUNDED OVE2
SCHOOLS IN 19 STATES, OF COURSE
THE MEMBERSHIP HAS CHANGED OVER
THE YEARS, AND THESE OUTREACH
PROJECTS ARE SMALL AMOUNTS OF
FUNDING, TYPICALLY ABOUT $7,500,
RECENTLY THE LAST COUPLE YEARS
WE DID SOME THAT WERE A LITTLE
BIT LARGER, ABOUT $30,000, JUST
TO HELP GET A SMALL AMOUNT OF
IMPACT AND REACH INTO THE
COMMUNITY.
THOUGH SMALL, THEY WERE VERY
IMPORTANT TO THE COMMUNITIES AND
VERY IMPORTANT TO THE
INSTITUTIONS, AND A FEW OF THESE
HAVE ACTUALLY HELPED DEVELOP THE
CAREERS OF THE FACULTY MEMBERS
THAT HAVE PARTICIPATED, MANY OF
THEM WERE ALSO FUNDING AWARENESS
AND USE OF NLM'S DATABASES,
EDUCATION, INCORPORATING NLM
RESOURCES INTO THE SEUN TISK
EDUCATION IN THE COMMUNITIES AS
WELL AS SOME OF THEM HAVE
ACTUALLY FOCUSED ON ON RESEARCH.
RESEARCH.
SO THESE HAVE BEEN IMPORTANT AND
QUITE IMPACTFUL ALTHOUGH SMALL
IN THE SCHEME OF SCIENTIFIC
FUNDING.
NOW WHAT I'D RILEY LIKE TO DO IS
HAVE YOU HEAR FROM ONE OF OUR
MEMBERS OF ENHIP AND HAVE HIM
TALK ABOUT HIS ROLE IN ENHIP AND
THE WORK THAT HE HAS DONE IN HIS
COMMUNITY.
SO I'D LIKE TO INTRODUCE YOU TO
DR. GABRIEL, GABE IBARRA-MEJIA,
WHO'S AN ASSISTANT PROFESSOR?
PUBLIC HEALTH SCIENCES AT THE
UNIVERSITY OF TEXAS AT EL PASO.
HE HAS AN M.D. DEGREE WITH MORE
THAN 30 YEARS EXPERIENCE AND
ALSO HOLDS A PH.D. IN
ENVIRONMENTAL SCIENCE AND
ENGINEERING, AS WELL AS A
MASTER'S DEGREE IN ERGONOMICS
AND DID A POSTDOC IN PUBLIC
HEALTH.
HIS RESEARCH INTERESTS RELATE TO
EPIDEMIOLOGY AND RISK ASSESSMENT
OF ENVIRONMENTAL AND
OCCUPATIONAL EXPOSURES, AS WELL
AS ERGONOMICS AND WELCOME.
>> THANK YOU FOR THE KIND
INTRODUCTION, I DON'T KNOW IF I
DESERVE IT.
BY THE WAY, YOU DON'T NEED TO
STAND UP BUT YESTERDAY WAS MY
BIRTHDAY.
[APPLAUSE]
I HEAR MYSELF LIKE IN AN ECHO.
SO WHAT I'M ABOUT TO TELL YOU IS
A STORY OF SUCCESS.
SUCCESS WITH TWO LIKE THIS
BECAUSE THIS IS WHAT WE HAVE
DONE HERE AT YOU HIP.
ENHIP.
SO I'M GOING TO TRY AND PLAY
THIS VIDEO AND TRY TO GET THE
SOUND AND EVERYTHING TO GO.
DUS CLOSUDISCLOSURE, THIS IS NOE
OPENING SCENE FROM -- BUT THIS
IS THREE STATES, TWO CITIES IN
THE MIDDLE OF THE DESERT.
IN BETWEEN TEXAS, TEXAS IS NOT
ALL ABOUT DALLAS AND FORT WORTH
AND AUSTIN.
THIS IS TEXAS FAR WEST TEXAS.
THIS IS THE TEXAS NO ONE WANTS
TO TELL YOU ABOUT.
BUT WE'RE IN BETWEEN ARIZONA AND
SAN ANTONIO, THOSE ARE THE
BIGGEST CITIES IN BETWEEN SO
WE'RE IN BETWEEN, SO THEY'RE IN
THE LAND OF NOWHERE.
THEN IN THAT LAND OF NOWHERE,
IT'S THE UNIVERSITY OF TEXAS
EL PASO THAT STARTED MORE THAN A
HUNDRED YEARS AGO AS A COLLEGE
OF MINDS.
AND I'M SO GLAD TO TELL YOU THAT
YESTERDAY IT WAS RATIFIED THAT
THE COLLEGE OF MINDS WAS BEING
REINSTATED AGAIN.
SO THAT IS A GOOD THING.
SO IN THAT PART OF THE WORLD
THIS IS WHERE I DO THAT WORK.
I DON'T DO IT BY MYSELF.
SO LET ME TELL YOU WHAT'S A
LITTLE BIT ABOUT ENHIP AND
OBJECTIVES, AND WHY THIS
RELATIONSHIP BETWEEN ENHIP AND U
TEP IS SO IMPORTANT AT LEAST TO
ME.
BECAUSE IT HAD AN IMPACT, ON
WHAT?
ON THE UNIVERSITY, BUT MOST
IMPORTANTLY, ON THE COMMUNITY.
CAPACITY BUILDING, HELPED ME
ACTUALLY -- IT SAYS ASSISTANT
PROFESSOR, I ACTUALLY HAVE
TENURE NOW.
THAT'S A GOOD THING.
SO IT HAS CAPACITY BUILDING,
INCREASED RESEARCH OUTPUT NOW WE
ARE CLASSIFIED AS AN
R1 INSTITUTION BECAUSE WE BRING
A LOT OF DOLLARS WITH RESEARCH
MONEYS.
IT HELPS STUDENTS DEVELOP, AND
THIS POPULATION OF STUDENTS IS
VERY, VERY PARTICULAR.
MOSTLY HISPANIC MORE THAN 80%
HISPANIC, AND ALMOST ALL OF THEM
ARE FIRST TO ATTEND COLLEGE.
SO THIS IS A UNIQUE POPULATION
AND WE HELP THEM OUT WITH
INTERNSHIPS, WORKSHOPS AND ALL
THESE THINGS IN THE INFORMATION
CYST TELL TAKING A LOT OF
EMPHASIS WITH.
MOST IMPORTANTLY IN AN
R01 INSTITUTION THERE'S CROSS
COLLABORATION.
THAT HAS BEEN KEY.
SO ALL THE PROJECTS THAT WE HAVE
BENEFITED WITH ENHIP OR THE
FUNDING WITH ENHIP HAS CROSS
DISCIPLINARY, HAS BEEN NO
SINGLE -- SILO, THINGS LIKE
THAT. THE OTHER MORE IMPORTANT
THING IS ABOUT WHAT WE'RE HERE
ABOUT.
IT'S ABOUT THE COMMUNITY.
SOMEONE SAID HOW WE DO IT, IT'S
COMMUNITY FIRST.
THE SOLE SOURCE OF BEING.
WE HAD A LOT OF COMMUNITY
ENGAGEMENT, YES, THEY WORK, THEY
DON'T WORK, ALSO THE PEOPLE JUST
GO THERE FOR THE -- AND THINGS
LIKE THAT, SO IT DOES.
BUT WE USE IT FOR SOMETHING
ELSE.
WE FOCUS THIS UNDER UNDERSERVED
POPULATION.
IF YOU LOOK RIGHT NOW AND OPEN
YOUR ENVIRONMENTAL JUSTICE -- BY
ECHT PA AND YOU LOOK AT EL PASO,
IT'S ALL BLUE.
IT'S ALL BLUE BECAUSE ALMOST 90%
OF THE POPULATION IS
UNDERSERVED.
BUT WE ALSO HAVE RURAL AREAS,
EVEN MORE -- NEED MORE HELP.
IT ALSO HELPS US WITH GAINING
COMMUNITY TO HELP INFORMATION
ACCESS.
WE DO NOT JUST GO AND PARACHUTE
AND COLLECT DATA AND DO THINGS
LIKE THAT, NO, WE ACTUALLY GO
AND DO SOMETHING THAT THEY WANT
US TO DO.
HOW TO UNDERSTAND WHEN SOMEONE
SAYS A RATE AND PERCENTAGE AND
THEY'RE NOT THE SAME, THEY
ACTUALLY GET TO UNDERSTAND THAT,
AND SOMEHOW WE KNOW WE HAVE SOME
DATA THAT WE HAVE HAD SOME
POSITIVE HEALTH OUTCOMES IN
THESE COMMUNITIES.
WE ALSO CREATED PARTNERSHIPS IN
COLLABORATION.
HOW HARD IS TO TRUST IN A
COMMUNITY, GUYS?
IT IS REALLY HARD.
ESPECIALLY AFTER AN EVENT LIKE A
PANDEMIC.
I'M FROM TEXAS.
I'M NOT ALLOWED TO TELL YOU WHAT
THE PANDEMIC WAS ABOUT, RIGHT,
BECAUSE IT'S NOT ALLOWED, BUT WE
WERE THROUGH A PANDEMIC, RIGHT?
QUESTWE AMPLIFIED ALL THE IMPAC.
THIS HAS ONLY SERVED TO AMPLIFY
WHAT WE WERE DOING AND WHAT WE
CONTINUE DOING.
SO SINCE THE HISTORY IMPACT, WE
HAVE HAD 12 FUNDING GRANTS AT
UTEP.
THE TOPICS HAVE BEEN VERY
DIVERSE.
BUT THE FOCUS HAS ALL THE TIME
BEEN ON THESE UNDERSERVED
POPULATIONS, LOCAL COMMUNITIES.
MYSELF, I HAVE THREE OF THEM.
MORE THAN ANYONE ELSE.
I DON'T KNOW WHY.
PROBABLY THEY LIKE ME MORE THAN
ANYONE ELSE.
BUT THE LATEST ONE, I WANT TO
TALK TO YOU ABOUT, THE
ENVIRONMENTAL HEALTH EDUCATION.
THIS CAME OUT AS AN IDEA,
SCIENCE, HEALTH LITERACY, IN
EL PASO COUNTY.
WE TARGETED THE COMMUNITY,
ESPECIALLY THE RURAL COMMUNITY
AROUND EL PASO.
NOT EL PASO, BUT IF YOU DON'T
KNOW, YES, WE DO HAVE SOME
AGRICULTURE IN EL PASO, TEXAS
BECAUSE IT'S CLOSE TO THE RIVER
AND IT STILL HAS SOME WATER IN
IT.
SO WE WANTED TO FOCUS ON THAT
COMMUNITY.
HOW WE DID THIS, WELL, WE WENT
TO THE COMMUNITY.
AND ASKED THEM, OKAY, THE
ENVIRONMENT IS IMPORTANT, WHAT
DO YOU WANT US TO DO.
WHAT WE NEED IS TO DEVELOP
SOMETHING AND EVERYONE NEEDS TO
LEARN.
SOMETHING THAT IS NOT
STANDARDIZED, SOMETHING THAT IS
TENDERED TO THE COMMUNITY.
SO WE WENT AND MADE USE OF
SOMETHING THAT WE CALL THE --
COMMUNITY HELD WORKERS, WE DID A
FANTASTIC JOB DOI DURING THE
PANDEMIC, LOCAL SCIENCE TEACHERS
AND ENVIRONMENTALISTS, COMMUNITY
HEALTH WORKERS, OF COURSE WITH A
LIBRARIAN, IN ORDER FOR THEM TO
ACCESS THE OPEN SOURCE MATERIALS
AND WE WENT -- EL PASO, TEXAS
AND MOST IMPORTANTLY, SIR, WE
TARGETED JUNIOR AND MIDDLE HIGH
STUDENTS.
THOSE WERE OUR TARGET.
THIS IS WHERE WE WANT TO START.
WE'RE NOT GOING TO START WITH
OTHER, WE'RE GOING TO START
EARLY, RIGHT?
SO WE DEVELOP A REPOSITORY OF
NLM RESOURCES, A PROGRAM THAT WE
CALL STEAM, NOT STEM, BECAUSE
YOU INCLUDED ART.
WHY ART?
AGAIN, GABE, WHY ART, RIGHT?
THIS IS ABOUT STEM.
ART IS EMBEDDED IN THE CULTURE
OF THESE COMMUNITIES.
IF YOU DON'T ADD ART TO IT, THEY
WON'T VISUALIZE IT, THEY WON'T
SENSE IT, THEY WON'T FEEL IT,
THEY WON'T FEEL EMPOWERED.
THEY NEED TO EXPRESS THEMSELVES.
EVEN THOUGH THIS MIGHT BE VERY
HARD SCIENCE, THEY NEED TO FEEL
IT, THEY NEED TO VISUALIZE IT,
THEY NEED TO MAKE THEM THEIR
OWN.
SO WE INTEGRATED A CURRICULUM
BASED ON THIS, AND WE HAVE JUST
FINISHED, RIGHT, WE DEVELOPED
SIX MODULES BASED ON THE INPUT
OF ALL THE PARTNERSHIPS THAT WE
DID.
AND THESE WERE THE MAIN TOPIC
THAT WE ADDRESSED.
ENVIRONMENTAL HEALTH IN GENERAL,
LOCAL ENVIRONMENTAL CHALLENGES,
WHICH THEY IDENTIFY THEMSELVES,
THEY SAY THIS IS THE PROBLEM AND
THESE COMMUNITIES NOW ARE AWARE
THAT THEIR WATER MIGHT BE
CONTAMINATED WITH ARSENIC AND
THEY ALL KNOW IT.
BECAUSE THEY'RE NOT CONNECTED TO
THE MUNICIPAL SOURCES.
THEY DIDN'T KNOW THAT TIRES WERE
MORE THAN A NUISANCE BECAUSE
EVERYONE DISPOSES OF THEIR OLD
TIRES THERE AND THEY CONTAMINATE
EVERYTHING BESIDES IT LOOKS
AWFUL.
RIGHT?
THEN WE ADDED THESE CULTURAL
PERSPECTIVES IN ENVIRONMENTAL
HEALTH.
LET THEM EXPRESS THEMSELVES, LET
THEM USE THEIR LOCAL KNOWLEDGE,
THEIR ELDERS, BRING EVERYONE
HERE, RIGHT?
BECAUSE THEY, THE PURPOSE OF
THEM IS FOR THEM TO BECOME THEIR
OWN ADVOCATES NOT ONLY FOR THE
ENVIRONMENT BUT ALSO FOR HEALTH,
RIGHT?
AND THEN WE SAID DATA-DRIVEN
ENVIRONMENTAL HEALTH, HOW ARE WE
GOING TO DO THAT.
WELL, WE GAVE THEM ACCESS.
WE GAVE THEM ACCESS TO
UNIVERSITY AND TO THE NLM
RESOURCES, WE GAVE THEM A
COMPUTER, WE GAVE THEM ACCESS TO
THE CLOUD AND SHOWED THEM HOW TO
USE IT AND WHERE TO FIND IT AND
WHERE TO GET ALL THAT
INFORMATION NOT ONLY FOR
THEMSELVES, BUT FOR THEIR
FAMILIES.
SO THEY CAN ACTUALLY TURN INTO
KIND OF LOCAL SCIENTISTS, NOW
PROBABLY THIS NEXT SATURDAY IS
GOING TO BE A LITTLE GRADUATION,
WE WANT TO GET THEM A
CERTIFICATE THAT SAYS JUNIOR
ENVIRONMENTAL SCIENTIST, AND
THEY'RE GOING TO GRADUATE AND
THEY'RE GOING TO LOOK GOOD,
RIGHT?
SO WHAT WE ALSO GAIN, KNOWLEDGE
AND AWARENESS.
WE HAVE A WAITING LIST NOW.
PEOPLE WANT THIS TO REPEAT AND
REPEAT AND REPEAT AND REPEAT.
WE WANT -- YOU KNOW, THEY WANT
TO INCLUDE COMMUNITY HEALTH
WORKERS, BECAUSE THE COMMUNITY
HEALTH WORKERS ARE SO FANTASTIC
AT DOING THESE JOBS AND RURAL
HEALTH.
ACTUALLY LOCAL GOVERNMENTS NOW
WANT US TO COLLABORATE.
BECAUSE YOU DID THIS SO WELL, WE
WANTED TO DO THIS.
WE WERE REACHED OUT TO BY LOCAL
SCHOOLS, SO HOW WAS THAT
CURRICULUM LOOK LIKE, WE WANT TO
PUT IT HERE.
SEE WHAT WE CAN DO.
NOW PEOPLE KNOW WHAT WE'RE
DOING, THEY WANT TO GIVE US
MONEY.
ISN'T THAT COOL?
THEY WANT TO GIVE US MORE MONEY.
WE'RE DOING THINGS LIKE THAT.
SO THIS PROJECT IS A CALL TO
ACTION THAT YOU10 PLUS ENHIP
ACTUALLY IS SUCCESS, RIGHT?
THIS RELATIONSHIP NEEDS TO
CONTINUE FLOURISHING.
BECAUSE WE'RE NOT DONE.
SIMPLE AS THAT.
WE'RE NOT DONE, WE'RE NOT GOING
TO STOP.
WE MAY OR MAY NOT GET MORE
FUNDING FOR ENHIP BECAUSE I
THINK PROBABLY I ABUSE IT A
LITTLE BIT, BUT WE'RE GOING TO
GET FUNDING FROM SOME PLACES.
WE ALREADY HAVE SOMETHING GOING.
AND BY THE WAY, THIS IS ONE OF -
THE LOCAL MAYOR WHO DECIDED TO
JOIN THE PROGRAM AND JUST AUDIT
THE COURTS, BECAUSE THAT'S WHAT
A BUNCH OF OTHER PEOPLE DID.
FAMILY CAME, YOUNGER BROTHERS OF
THE STUDENTS CAME.
SO NOW EVERYONE WANTS IT AND NOW
WE HAVE A WAIT LIST, I DON'T
KNOW HOW WE'RE GOING TO SOLVE
THAT BUT WE'RE GOING TO SOLVE IT
SOMEHOW, RIGHT?
SO OUR FOCUS FOR THE FUTURE ARE
THIS, IS TO EXPAND.
EXPAND, EXPAND, ESPECIALLY
DIGITAL HEALTH LITERACY.
HOW, GIVE THEM ACCESS, JUST GIVE
THEM A CHANCE.
RIGHT?
NOT JUST GO AND TELL THEM AND
COLLECT DATA, TELL THEM HOW TO
DO IT, HOW TO DO IT BY
THEMSELVES, HOW TO TEACH OTHERS,
RIGHT, AND IF WE DO THAT, WE
WILL BE BETTER PREPARED TO
ADDRESS OUR NEXT FUTURE
CHALLENGES.
WE WILL STILL MAINTAIN OUR
HEALTH EQUITY FOCUS.
WE'RE GOING TO BE BRIDGING
DISPARITIES, THERE WILL BE MORE
COMMUNITY ENGAGEMENT AND IMPACT.
OF COURSE THERE'S GOING TO BE
FACULTY INVOLVED, WE'RE GOING TO
BE ENGAGED SCHOLARSHIP, BUT WE
NEED TO REMAIN WITH A LOCAL
FOCUS.
BECAUSE THIS CANNOT BE A ONE
SIZE FITS ALL.
MY PROGRAM, OR OUR PROGRAM IS
NOT GOING TO FIT YOURS.
YOU NEED TO DO YOUR OWN.
SO DON'T COPY IT OUT.
TO, YOU CAN, YOU CAN.
SO WHAT IS FOR THE FUTURE?
WE THINK THIS MUST CONTINUE
BECAUSE THE IMPACT, IT'S
TRANSFORMING, IT HAS
TRANSFORMED, IT HAS MADE A
CHANGE.
IT HAS EMPOWERED THESE
COMMUNITIES.
THE PUBLIC HEALTH DEPARTMENT HAS
ASKED -- TO REACH OUT AND USE
PROMATORAS AND THINGS LIKE THAT.
WE WANT TO INNOVATE, WE KNOW
A.I. IS COMING, THE DATA-DRIVEN
SCIENCE IS COMING.
BUT WE STILL WANT TO MAINTAIN IT
WITH EQUITY.
EVERYONE SHOULD HAVE ACCESS TO
IT, NOT ONLY HAVE ACCESS TO IT,
BUT BEING ABLE TO INTERPRET IT
AND USE IT AND MAKE DECISIONS
BASED ON IT.
RIGHT?
SO WHAT WE HAVE PROVEN WITH A
PROJECT IS THAT COLLABORATION
WORKS.
RIGHT?
AND THIS TYPE OF COLLABORATION
FOR US IS UNIQUE, AND HAS PROVEN
SUCCESS.
SO THE LAST THING THAT I WANT TO
TELL YOU IS THAT WHAT WE WANT TO
DO IS AMPLIFY OUR REACH.
LET'S SUSTAIN OUR SOLUTION AND
KEEP FOCUS ON THESE UNDERSERVED
POPULATIONS.
AND I THINK THAT'S ALL I HAVE TO
SAY, IF I'M NOT MISTAKEN.
YES, THANK YOU.
AND HAPPY BIRTHDAY TO ME.
>> THANK YOU AND HAPPY BIRTHDAY.
I WANT TO SAY THAT IT'S VERY
CLEAR UTEP HAS TAKEN FULL
ADVANTAGE OF WORKING WITH NLM
AND THEIR COMMUNITY AND WE'RE SO
PLEASED WITH ALL THE SUCCESSES.
NOW I WANT TO MOVE ON TO THE
NEXT STEPS.
I KNOW WE ONLY HAVE A FEW
MINUTES, BUT I WANTED TO TALK A
LITTLE BIT ABOUT MAKING
CONNECTIONS, HOW CAN WE CONTINUE
WORKING WITH INSTITUTIONS THAT
SERVE UNDERREPRESENTED
COMMUNITIES BECAUSE WE SEE THEM
ASCAS KEY STAKEHOLDERS IN ADVANG
HEALTH GOALS AND PRIORITIES.
WHAT I'D LIKE TO DO IS POINT OUT
A FEW THINGS THAT NLM IS DOING
AND THAT NIH IS DOING AND HEAR
FROM YOU ABOUT WHAT YOU THINK
GOING FORWARD.
SO FIRST TO POINT OUT A FEW
THINGS GOING ON OR CHANGING AT
NLM AND NIH.
WHIW.AS WELL WE WORK AND COORDIE
THE NETWORK OF THE NATIONAL
LIBRARY OF MEDICINE, AND THIS IS
REALLY OUR FIELD GETTING OUT TO
ALL THE LIBRARIES ACROSS THE
COUNTRY AND THEN FROM THERE TO
HELP PROFESSIONALS FROM DIVERSE
COMMUNITIES.
SO MANY OF THESE LIBRARYS ARE
ALSO WORKING IN THEIR
COMMUNITIES AND WITH THEIR
SCHOOLS AND THE ENHIP
PARTICIPATING UNIVERSITIES ARE
ALSO PART OF THE NETWORK OF THE
NATIONAL LIBRARY OF MEDICINE AS
WELL SO THAT'S A NICE TIE-IN.
WE REALLY WANT TO ENSURE THAT
THE LIBRARIES CONNECT SO THAT
THE RESEARCHERS, THE CLINICIANS
HAVE THE TOOLS THE LIBRARIANS
CAN HELP THEM WITH AND A THEY
CAN PROVIDE TO SUPPORT THEIR
RESEARCH AND CLINICAL PRACTICE
AS WELL AS ENGAGE WITH THE
COMMUNITY AS WELL.
AND LET'S LOOK A LITTLE BIT AT
WHAT WE KNOW THAT THE NIH
DIRECTOR, DR. BERTAGNOLLI, WOULD
LIKE US TO DO AT NLM, TAKING ON
AS BEING THE DATA SCIENCE HUB IN
A CENTER FOR INNOVATION THAT
THEY FOCUS ON MOVING FROM
KNOWLEDGE TO DISCOVER REA.
DISKOPF RE.
WE TALKED ABOUT DATA SCIENCE,
IMPORTANT TO NLM AS WELL, AND WE
ALSO KNOW WE TALKED ABOUT HOW DO
WE WORK WITH A VARIETY OF
COMMUNITIES, VARIETY OF
POPULATIONS IN ENSURING THAT NIH
IS KNOWN TO NLM'S RESOURCES OR
KNOWN TO -- AND MEET THE NEEDS
OF ALL HEALTH PROFESSIONALS, NO
MATTER IF THEY'RE A MAJOR
INSTITUTION IN A MAJOR CITY OR
IN A SMALL COMMUNITY, SMALL
RURAL COMMUNITY.
SO THAT'S WHAT WE'VE BEEN DOING
AT NLM.
WHAT'S BEEN GOING ON AT THE NIH
LEVEL?
FIRST OF ALL IT STARTED IN
ENVIRONMENTAL JUSTICE PROGRAM
NIH-WIDE WORKING GROUP AND
THEY'RE DEVELOPING AN
ENVIRONMENTAL JUSTICE SCHOLAR
PROGRAM, A TRAINING PROGRAM AS
WELL AS CENTERS FOR EXCELLENCE,
SO THIS IS A KEY TIE-IN.
IN ADDITION, THEY'RE LOOKING AT
HOW TO INCREASE DIVERSITY BOTH
AT NIH AND AMONGST OUR GRANTEES
AND THEY'RE TRYING TO WORK AND
GET A BETTER UNDERSTANDING FROM
A LOT OF INSTITUTIONS ABOUT WHAT
WOULD HELP THEM IN TERMS OF
GETTING ACCESS TO FUNDING FROM
HIV.
NIH.
THEY HAVE A PROGRAM AND WORKING
WITH AND TALKING TO INSTITUTIONS
THAT HAVE APPLIED AND RECEIVED
FUNDING AND TO UNDERSTAND WHAT
THEIR CHALLENGES AND BARRIERS
ARE THERE.
THEY'RE ALSO TALKING WITH
INSTITUTIONS THAT APPLIED AND
DIDN'T RECEIVE FUNDING AS WELL
AS INSTITUTIONS THAT HAVEN'T
EVEN TRIED TO APPLY FOR FUNDING
FROM NIH YET.
TO GET A BETTER SENSE OF WHAT'S
GOING ON AND HOW WE CAN HAVE
BETTER COMMUNICATION AND ASSIST
MORE INSTITUTIONS IN TAKING
ADVANTAGE OF NLM FUNDING.
OF COURSE WE ALL KNOW AND HOPE
TO ALIGN WITH ALL OF THE
ACTIVITIES NLM HAS DONE NOT JUST
ON OUR OWN BUT IN CONJUNCTION
WITH THESE NIH-WIDE ACTIVITIES.
SO MOVING FORWARD, WE WANT TO
TALK TO YOU AND HEAR FROM YOU
ABOUT WHERE WE GO FROM HERE.
THE FOCUS OF THIS PROGRAM,
PARTICIPATION, MEMBERSHIP, HOW
WE CAN INTEGRATE WITH NLM AS
WELL AS WITH OTHER PARTS OF NIH
AND ALIGN WITH NIH AND NLM
GOALS.
SO WE LOOK FORWARD, BUT
BEFORE -- I'M GOING TO SKIP
AHEAD AND THEN WE'LL GO BACK TO
THAT SLIDE, I DO WANT TO THANK
SO MANY PEOPLE FOR PARTICIPATING
AND HELPING WITH THIS
PRESENTATION AND ALL TH THAT THY
DO BUT IN PARTICULAR I'D LIKE TO
THANK DR. KESSELMAN, OUR ENHIP
MANAGER FOR ALL THE WORK THAT
SHE DOES ON THIS AS WELL AS MANY
OTHER PEOPLE INCLUDING
DR. IBARRA-MEJIA WHO PRESENTED
TODAY, AS WELL AS ALL OF OUR
ENHIP MEMBERS.
I ALSO WANT TO SAY IN
CONCLUSION, HAPPY HBCU WEEK.
SO THANK YOU VERY MUCH, AND WE
WELCOME YOUR INPUT AND
DISCUSSION AS WE GO FORWARD.
THANK YOU.
>> SO THE DISCUSSIONS ARE
DR. KWITEK AND KATZ, BUT HE JUST
HAD TO STEP OUT.
>> IT'S SO NICE TO HEAR A
SUCCESS STORY.
HOW WONDERFUL.
I GUESS ONE OF MY QUESTIONS IS,
CAN YOU CLARIFY, ENHIP ISN'T
GOING AWAY, IT'S JUST THE
DATABASES THAT HAD BEEN
SUNSETTED?
>> WE DON'T HAVE SPECIAL
RESOURCES, WE'RE LOOKING TO SEE
WHAT DIRECTION WE SHOULD GO IN
ADDITION TO -- AND WE'VE
ALREADY -- [INAUDIBLE] HEALTH
LITERACY, DATA LITERACY, TALKED
ABOUT DATA SCIENCE WITH
INSTITUTIONS AS WELL. SO WE'RE
JUST TRYING TO THINK OF HOW WE
ENVISION THINGS FOR THE FUTURE.
>> IS THERE A CENTRAL LOCATION
TO SHARE THESE SUCCESS STORIES
ELSEWHERE?
ALL OF THESE STORIES, DIFFERENT
GROUPS AND PARTNERSHIPS HAVE
SORT OF COMMON THEMES THAT CAN
BE SORT OF ADVERTISED AND
CELEBRATED?
>> WE HAVE A WEBSITE BUT KE
COULD PROBABLY ENHANCE OR
IMPROVE, BUT WE DO HAVE A
WEBSITE THAT DESCRIBES THE
PROGRAM, ALL THE FUNDING
ACTIVITIES OVER THE YEARS, WHO
THE MEMBERS ARE THAT WE'VE BEEN
WORKING ON OVER THE PAST COUPLE
OF YEARS.
>> DO YOU TALK ABOUT LESSONS
LEARNED ON THE WEBSITE?
I DIDN'T SEE ANYTHING SPECIFIC,
SO LESSONS LEARNED, HOW CAN
OTHER COMMUNITIES SORT OF --
THERE'S NOT A RECIPE FOR THIS, I
MEAN, BUT THERE ARE WAYS,
STRATEGIES, WE'VE KNOWN ABOUT
THIS FOR YEARS, BUT STRATEGIES
THAT YOU USE, PERHAPS, MAYBE
SOME OF THE OTHER PARTNERS HAVE
USED.
>> THAT'S A GREAT IDEA.
I THINK THAT WOULD BE HELPFUL IF
WE LEARN ABOUT THE DIFFERENT
APPROACHES, NOT JUST -- BUT THIS
IS HOW WE DID IT, THE APPROACH
THEY TOOK, SO IT HELPS.
I THINK IN PARTICULAR, SOME
INSTITUTIONS MAY STRUGGLE WITH
WHAT TO DO OR HOW TO DO IT BUT
HAVE THE OPPORTUNITY TO SEE WHAT
OTHERS HAVE DONE AND HAVE DID
IT, IT MIGHT BE -- [INAUDIBLE]
>> SO FOLLOWING ON TO THAT, AND
SOMEONE WHO HAS AN ACCESS TO
PUBLIC HEALTH, I'VE LOVED SEEING
THIS.
IT'S FANTASTIC.
AND WHAT WE DO IN THE V.A. IS WE
HAVE AN EL PASO V.A. THAT I'VE
BEEN TO AND WE USE LESSONS
LEARNED AND TOOL KITS, RIGHT, SO
THAT IT'S -- YOU KNOW, I TRY TO
SAY THAT SOME PEOPLE COULD MAKE
CHOCOLATE CHIP COOKIES WITHOUT
LOOKING AT ANYTHING, PROBABLY I
COULD, WI BUT MOST PEOPLE NEED A
RECIPE.
SO -- HAS THAT BEEN YOUR
EXPERIENCE ALSO?
THAT HELPS PEOPLE REALLY JUMP
INTO DOING IT BECAUSE I
PERSONALLY SEE A LOT OF VALUE IN
THIS AND WOULD LOVE TO SEE HOW
THAT COULD BE EXPANDED WHERE YOU
WOULDN'T HAVE TO PUSH TO OTHER
COMMUNITIES BUT THEY WOULD BE
PULLING, RIGHT, TO WHAT YOU
MIGHT WANT TO DO.
>> [INAUDIBLE] STUDENT THAT WAS
A FORMER PHYSICIAN IN THE U.S.
ARMY, AND HE NOW WORKS WITH
VETERANS AND [INAUDIBLE] VERY
SIMILAR --
[OFF MIC]
IT'S NOT AN EXACT RECIPE -- TO
THEM -- UNIQUE.
[INAUDIBLE] NOT NECESSARILY
COMMUNITY -- PARTICIPATORY --
JUST NOT WALK IN AS EXPERTS AND
THIS IS WHAT YOU NEED.
NO, TELL ME WHAT YOU NEED.
>> I THINK THE OTHER THING -- I
WAS THINKING OF THIS, OFTENTIMES
AAK DEMISSIONS ATHEY GET OVERWHS
SUCH A HUGE DEAL, A HUGE
PROCESS.
I THINK IT WOULD BE GOOD IF YOU
COULD CHOKE IT, LIKE THIS WOULD
BE A SMALL IDEA, YOU KNOW, THIS
IS WHERE YOU MIGHT GO WITH THAT
SMALL IDEA.
AND STAGE IT.
BUT I WAS TALKING TO ANNE
EARLIER ABOUT MICRO PLASTICS.
I SEE THESE HUGE ISSUES NOT ONLY
IN UNDERSERVED COMMUNITIES, BUT
ALL OVER.
IT LIKE, PEOPLE DO NOT
UNDERSTAND HOW THIS IS IMPACTING
OUR HEALTH.
>> WELL, I CAN TELL YOU THAT IT
WAS ADDRESSED IN OUR CURRICULUM.
[INAUDIBLE] LOOKING INTO MICRO
PLASTICS.
THANK YOU.
>> I SAW YOUR COMMENT ABOUT
ADDITIONAL FUNDING AND PEOPLE
MIGHT BE PROVIDING SOME
ADDITIONAL FUNDING.
DOES THE PROGRAM ITSELF USE THE
PLATFORM OF THE NLM TO LEVERAGE
THOSE TYPES OF RELATIONSHIPS SO
THAT THE OTHER FOLKS COULD
BENEFIT FROM IT, SO FOR EXAMP
EXAMPLE -- OUTREACH FOR
POTENTIAL PARTNERSHIPS WITH --
BECAUSE THIS IS NOT A TYPICAL
RESEARCH TYPE OF THING, THIS IS
MORE OF AN EDUCATION COMMUNITY
AWARENESS WITH HOW TO REACH OUT
TO LOCAL COMMUNITY HOSPITALS TO
SEE IF THEY WANT TO PARTICIPATE
AND FUND SOME OF THIS, MIGHT BE
IN YOUR COMMUNITY FROM A
CORPORATE PERSPECTIVE, A LOT OF
CORPORATIONS PARTNER WITH PEOPLE
ON THESE TYPES OF ACTIVITIES
AND -- COMMUNITY OUTREACH,
ACCESS TO HEALTH INFORMATION,
THERE'S A PROGRAM AT NLM TO TELL
THOSE TYPE OF OUTREACHES TO HELP
FIND PARTNERS TO EXPAND AND --
NOT ONLY WITH NGOs AND
COMMUNITY-BASED ORGANIZATIONS,
BUT THE LOCAL -- [INAUDIBLE].
NOW THEY'RE WILLING TO TAKE OUR
STUDENTS AND TEACH THEM AND TAKE
THEM INTO -- TAKE THEM TO DO
THIS AND THAT.
NOW THEY'RE REACHING OUT TO US
BECAUSE WE ADDED THE -- WITHIN
ENVIRONMENTAL SCIENCE -- PUBLIC
HEALTH.
SO THEY'RE REACHING OUT.
ONE COMPANY THAT DELIVERS MOST
OF THEIR PRODUCTS -- WEBSITE
ALSO WANTS TO PARTNER -- START
WITH AN A.
THEY WANT TO -- THERE'S A LOCAL
DISTRIBUTION, THEY WANT TO
PARTNER -- THEY SEE ALL THESE
KINDS OF -- AND HELP US REACH
OUT TO THE COMMUNITIES.
AND TO DEVELOP WORKFORCE.
FOR EXAMPLE, ONE OF THE THINGS
THAT WE'RE PUSHING FOR IS IN
THE -- ENVIRONMENTAL HEALTH AND
SAFETY WHICH IS A HUGE NEED AT
THAT -- THERE IS NOT -- NO
WORKFORCE DEVELOPMENT SO THIS IS
SOMETHING THEY'RE REACHING OUT,
CAN YOU DO THIS, CAN YOU HELP
US, NOW --
>> COMMUNITY ORGANIZATIONS WE
HAVE A LOT OF CONNECTIONS -- AS
WELL AND WE DO PROVIDE SOME
SMALL AMOUNTS OF FUNDING FOR A
VARIETY OF COMMUNITY ENGAGEMENT
ACTIVITY THAT WAY -- SEPARATE
FROM THIS PROGRAM.
>> AND SO THAT'S SOMETHING THAT
WE WERE THINKING ABOUT IS WE
RIGHT NOW HAVE AN RFI --
>> YES.
>> WE'RE THINKING ABOUT THE --
BEFORE THE NETWORK AND THINKING
IS THIS AN OPPORTUNITY TO
COMBINE THIS TO BUILD UPON A LOT
OF LESSONS LEARNED THAT WE'VE
DISCOVERED OVER THE YEARS OF --
A LOT OF COMMUNITY ENGAGEMENT
TRAINING PROGRAMS AND THINGS
LIKE THAT THROUGH THE NETWORK,
AND COMBINING IT SO YOU GET NOT
ONLY UNIVERSITIES BUT YOU ALSO
GET THE LIBRARIANS AND OTHER
COMMUNITY -- OF THE ENGAGEMENT
INTO THIS AS WELL.
SO THAT'S KIND OF SOME OF THE
THINGS WE'RE THINKING ABOUT WITH
THIS, HOW CAN WE EXPAND ON IT,
THINKING ABOUT THE CARE PROGRAM
THAT YOU'VE HEARD ABOUT FROM DRT
THAT, ESPECIALLY IN NEW
COMMUNITIES, AND THE BEAUTIFUL
THING ABOUT THE NETWORK -- IS IN
A DIFFERENT GEOGRAPHICAL
LOCATION, SO WE DO HAVE THAT
CULTURAL AWARENESS, AND PEOPLE
THAT LIVE IN THOSE COMMUNITIES
ARE ALSO THE PEOPLE THAT -- THIS
TYPE OF OUTREACH AND ENGAGEMENT
ACTIVITY.
WE FOUND IT VERY EFFECTIVE WITH
THE ALL-OF-US PROGRAM AS WELL.
-- INSTITUTIONS GET -- BECAUSE
ON THE BACK, THERE'S STILL THE
SAME INSTITUTIONS ACROSS THE
MAP, SO WONDERING WHAT ARE THE
REQUIREMENTS?
>> I DON'T KNOW THAT -- WE KEPT
IT FAIRLY SMALL BUT WE ARE
CERTAINLY OPEN TO CHECKING WITH
OTHER INSTITUTIONS TO SEE HOW WE
CAN EXPAND MEMBERSHIP AND EXPAND
PARTICIPATION IN A VARIETY OF
WAYS.
IT BEEN A LITTLE AD HOC OVER THE
YEARS, AGAIN, WE STARTED WITH
THE HEALTH PROFESSIONAL SCHOOLS
AND -- HBCUs AND THEN
EXPANDED, PARTICULARLY TRYING TO
LOOK AT -- ACROSS THE COUNTRY AS
WELL AS CERTAIN POPULATIONS,
TRIBAL COLLEGES -- SERVING
INSTITUTIONS AS WELL, SO WE'VE
BEEN TRYING TO MAKE SURE WE HAD
SOME REPRESENTATION ACROSS THE
DIVERSITY OF SCHOOLS SERVING
MINORITY AND UNDERREPRESENTED
POPULATIONS.
>> IF THE GOAL IS TO PROMOTE
ENVIRONMENTAL JUSTICE THROUGHOUT
THE COUNTRY, YOU HAVE THE CORE
ALREADY, I THINK THE QUESTION IS
HOW DO YOU CREATE A LEARNING
SYSTEM THAT TAKES ADVANTAGE OF
THE FOUNDATION YOU ALREADY HAVE
AND THEN EXPANDS IT THROUGHOUT
THE NATION.
AND SO IS THERE AN OPPORTUNITY
TO CREATE A MEMBERSHIP MODEL
WHERE YOU THEN HAVE -- THERE'S
CERTAIN TIERS OF MEMBERSHIP SO
THAT PEOPLE CAN PLUG IN, YOU
START MODULARIZING THE TOOLS,
LIKE YOU START -- TOOL KITS AS
AN EXAMPLE, I WOULD LOVE TO HEAR
MORE ABOUT HOW YOU ACTUALLY
ENGAGE THE COMMUNITY.
LIKE THAT, TO ME, EVERY
COMMUNITY IS DIFFERENT, SUCH A
DISSOLUTION OF COMMUNITY
ORGANIZATION AND LACK OF CIVIC
ENGAGEMENT, THE COMMUNITY
ORGANIZATION THAT USED TO BE
PRESENT YOU COULD ENGAGE WITH NO
LONGER EXISTS, SO WHAT'S THE
TOOLKIT, WHAT ARE THE STRATEGIES
[INAUDIBLE] BUT THE FUNDAMENTAL
ISSUE IS HOW YOU LEVERAGE THE
NETWORK SO YOU CREATE A NETWORK
EFFECT SO THAT YOU START
EXPANDING NOT JUST WITHIN
THIS -- OF FUNDING BUT --
AGENCY, PEOPLE WHO WANT TO --
[INAUDIBLE] IT'S REALLY KIND OF
A LEARNING SYSTEM MODEL --
MEMBERSHIP AND RESOURCES
[INAUDIBLE].
>> BACK IN THE DAYS, THE --
[INAUDIBLE]
>> IT WAS IN EL PASO.
>> SO WE DO HAVE AN ANNUAL
MEETING, WHAT THEY'RE DOING,
WHAT THEY'RE WORKING ON, -- I
THINK IT WAS IN APRIL, RIGHT?
>> [INAUDIBLE]
>> FOR THE -- MEETINGS -- DO YOU
BRING IN OTHER FEDERAL GRANTING
AGENCIES TO PARTICIPATE?
I KNOW FOR A FACT,
CONGRESSIONALLY DIRECTED MEDICAL
RESEARCH PROGRAM FOR THE
MILITARY, VARIETY OF GRANTS,
SOME OF WHICH HAVE 100% FUNDING
RIGHTS.
I'M SURE THEY'D LOVE TO GET THE
WORD OUT ON -- WONDERING IF
THERE ARE THINGS LIKE THAT --
>> WE HAVE A THEME TO EACH
MEETING AND WE BRING IN FOLKS, I
DON'T KNOW THAT WE FOCUS
SPECIFICALLY ON BRINGING IN
AGENCIES TO TALK ABOUT THEIR
FUNDING OPPORTUNITIES OR IF WE
HAVE, IT'S BEEN A WHILE.
DO YOU REMEMBER, DIANE?
>> IT'S MOSTLY BEEN ABOUT MOSTLY
NIH RESOURCES AND NLM.
OF COURSE WE HAVE NIH, THE
ENVIRONMENTAL -- DID I SAY THAT
RIGHT?
-- A LOT OF WORK AND THEY HAVE
A LOT OF RESOURCES, AND AGAIN,
YOU NEED TO MENTION GRANTING, SO
RIGHT NOW THESE AREN'T GRANTS,
THESE ARE SUBAWARD FOR CONTRACTS
AND SO AGAIN, IF WE'RE THINKING
ABOUT THE NETWORKING INTO THE
FUTURE, IT COULD BE -- AND
THAT'S, AGAIN, WHERE YOU CAN DO
ADDITIONAL SUPPLEMENTS AND
THINGS LIKE THAT, IF ANOTHER
AGENCY OR SOME -- DEPARTMENT ON
SPECIFIC ACTIVITIES.
?RO IF THERESO IF THERE WAS A PI
LIKE THAT WORD.
-- HOW MIGHT THAT WORK?
>> I DON'T HAVE THE ANSWER FOR
YOU.
WE'VE DONE WORK WITH CDC IN THE
NETWORK, WE DO PROVIDE THE --
WHAT'S IT CALLED -- ACCESS
PROGRAM AND SO WE DO WORK --
[INAUDIBLE] THAT PROVIDE ACCESS
TO THE LITERATURE FOR STATE AND
LOCAL PUBLIC HEALTH
ORGANIZATIONS AND THE TRAINING,
SO KEEPING ABREAST AND AWARE OF
HOW THEY CAN GET RESOURCES -- SO
THAT IS ONE OF THE WAYS THAT WE
COULD DO IT THAT WE HAVE WORKED
ACROSS SO I THINK IT IS
POSSIBLE.
I'D HAVE TO CHECK -- MUCH
MORE --
>> SPECIFIC MECHANISTIC ISSUE IS
IF THEY CAN IDENTIFY A
MILITARY -- THAT IN TEXAS?
>> I WAS JUST GOING TO ADD, I
THINK WHERE YOU WERE GOING, THEY
WOULDN'T NECESSARILY HAVE TO
PARTNER WITH YOU ALL OR USE YOUR
SAME MECHANISM.
IT JUST MAKING THEM AWARE
BECAUSE THEY CAN HAVE A CONTRACT
WITH YOU OR AGREEMENT WITH YOU
BUT THAT DOESN'T PREVENT THEM
FROM APPLYING TO THIS
ORGANIZATION FOR A GRANT AND
[INAUDIBLE].
>> YES.
WE'VE DONE A LOT OF INTERACTIONS
WITH WALTER REED ACROSS THE
STREET, AND OTHER LIBRARY
ORGANIZATIONS, SO ABSOLUTELY, I
THINK THIS --
>> BACK WITH THE NETWORK --
CONSUMER HEALTH, THE COMMITMENT
WAS SO STRONG THAT THEY HIRED A
CONSUMER HEALTH LIBRARIAN AT
EACH OF THE NETWORK OFFICES?
THAT LEVEL OF --
>> WE'RE JUST IN THE PLANNING
STAGE AND TRYING TO --
[INAUDIBLE] TO HELP US FIGURE
OUT WHERE TO GO IN THE FUTURE
WITH THAT.
WHAT WE TYPICALLY DO IS -- AND
EVERY ORGANIZATION -- WHAT THEY
THINK WILL HELP THEM ACHIEVE THE
GOALS OF THE -- SO -- HOW YOU
RECRUIT TO WORK IN THE
DIFFERENT -- BUT WE DO WANT THEM
TO ADDRESS -- WHAT YOU NEED TO
DO THE WORK THAT YOU OUTLINE --
[INAUDIBLE]
>> ENCOURAGING PARTICIPATION
FROM THE -- INSTITUTIONS --
UNREPRESENTED POPULATIONS --
PARTICIPATED IN -- ACTIVITIES AS
WELL.
>> JUST FOLLOWING UP ON THAT,
I'M CURIOUS IF THERE'S ANY KIND
OF PIPELINE BECAUSE THESE
PARTICIPANTS ARE ALREADY --
ENSURING THAT THAT CAN CONTINUE?
>> MY NEXT STEP IS SOMETHING
THAT I WAS ALREADY PRESENTING
HERE.
COMMUNITY, LABORATORY -- THE
LAB, RIGHT, CLINICIANS BACK TO
COMMUNITY.
-- THAT THEY CAN MAKE AN
INFORMED DECISION WHERE TO GO IN
STEP --
>> SO WHAT WE WE'RE KIND OF ROLA
LITTLE OVER, BUT THANK YOU SO
MUCH.
THIS HAS BEEN -- THIS WAS A
GREAT PRESENTATION.
GREAT WORK.
>> NEXT WE'RE GOING TO HAVE THE
LISTER HILL NATIONAL CENTER FOR
BIOMEDICAL COMMUNICATIONS VISION
AND UPDATE FROM THE NEW LEADER.
>> HI.
GOOD AFTERNOON, EVERYONE.
I'M KIN WAH FUNG, DIRECTOR OF
THE LISTER HILL NATIONAL CENTER
FOR BIOMEDICAL COMMUNICATIONS.
SO WHAT I'M GOING TO SHARE WITH
YOU TODAY IS THE VIDEO DIVISION
OF LISTER CENTER AND GIVE YOU
SOME UPDATES AND HIGHLIGHTS OF
ACTIVITIES OF LISTER HILL
CENTER.
SO SINCE I'M NEW TO THE
POSITION, I THINK I'LL START BY
TELLING YOU A LITTLE BIT ABOUT
MYSELF.
SO I COME FROM A MEDICAL
BACKGROUND.
I WORKED AS A SURGEON AT A
HOSPITAL IN HONG KONG FOR 15
YEARS.
I GOT MORE AND MORE INTERESTED
IN COMPUTERS AND MEDICAL
INFORMATICS.
EFFICIENTEVENT EFFICIENEVENTUALA
POSITION OF SENIOR EXECUTIVE
MANAGER FOR HEALTH INFORMATICS.
I WAS INVOLVED IN BUILDING AN
ELECTRONIC HEALTH RECORD SYSTEM
SERVING 5 MILLION PATIENTS IN
HONG KONG.
I CAME TO LISTER HILL CENTER IN
2003.
REASON WAS TO TAKE UP A
MASTER'S DEGREE PROGRAM IN
MEDICAL INFORMATICS AND FOR FULL
DISCLOSURE, DR. JIM WAS -- I
JOINED THE LISTER HILL CENTER AT
THE NATIONAL LIBRARY OF
MEDICINE.
FIRST AS A POSTDOC FELLOW, THEN
I BECAME A STAFF SCIENTIST.
SO FOR THE PAST 20 YEARS, MY
MAIN WORK WAS AS A RESEARCH
SCIENTIST DOING RESEARCH IN TWO
MAIN AREAS.
THE FIRST IS CLINICAL DATA
ANALYTICS, SO IN THAT, I WAS
TRYING TO ANSWER IMPORTANT
MEDICAL QUESTIONS USING REAL
WORLD CLINICAL DATA.
SO I PUBLISHED ON COVID-19, LONG
COVID, HIV/AIDS, ADVERSE
REACTION OF DRUGS AND OTHER
TOPICS.
SO THE SAME AREA OF MY RESEARCH
IS AROUND CLINICAL TERMINOLOGY.
THE GOAL THERE IS TO FACILITATE
THE USE AND ENHANCE THE VALUE OF
CLINICAL TERMINOLOGIES IN
CLINICAL ENVIRONMENT.
SO I BECAME ESTABLISHED AS A
RECOGNIZE EXPERT IN THE FIELD OF
HEALTH DATA STANDARDS AND I'VE
SERVED ON NATIONAL AND
INTERNATIONAL ADVISORY
COMMITTEES AND WORK GROUPS.
SO LET'S GO BACK TO THE
BEGINNING.
THE LISTER HILL CENTER WAS
ESTABLISHED IN 1968 BY AN ACT OF
CONGRESS.
AND THE PURPOSE OF LISTER HILL
CENTER IS TO FURTHER BIOMEDICINE
THROUGH INNOVATIONS IN COMPUTER
AND DIGITAL COMMUNICATIONS
TECHNOLOGY, DATA SCIENCE
RESEARCH AND COMPUTER
APPLICATIONS DEVELOPMENT.
THE NAME OF THE CENTER IS TO
HONOR SENATOR LISTER HILL FROM
ALABAMA, WHO WAS A STAUNCH
ADVOCATE FOR HEALTHCARE AND
EDUCATION.
SO FAST FORWARD TO THE YEAR
2018, SO THE LISTER HILL CENTER
REACHED -- SO WHAT HAPPENED IN
THAT YEAR?
WE CELEBRATED OUR 50TH
ANNIVERSARY.
SO THERE'S A LOT OF PARTIES AND
FESTIVITIES.
THIS IS RIGHT OW OUTSIDE WHERE E
TOOK THIS GREAT PHOTO OF THE
PEOPLE WORKING THERE AT THAT
TIME.
AND ANOTHER THING THAT WE ALSO
DID WAS THAT WE CREATED THIS
GIGANTIC POSTER, WHICH IS STILL
ON DISPLAY IN THE LOBBY UP UNTIL
RECENTLY.
AND ON THIS POSTER, WE SUMMARIZE
ALL THE ACTIVITIES IN THE PAST
50 YEARS FOR THE LISTER HILL
CENTER.
OF COURSE YOU CANNOT READ ALL
THE WORDS HERE, SO I'VE DONE
SOME SUMMARY FOR YOU.
SO THERE ARE FOUR MAIN AREAS OF
MEDICAL INFORMATICS RESEARCH
THAT THE LISTER HILL CENTER HAS
EMBARKED ON IN THE PAST.
SO THESE ARE HIGH PERFORMANCE
COMPUTING AND COMMUNICATIONS,
MEDICAL IMAGE PROCESSING, HEALTH
DATA STANDARDS AND
TERMINOLOGIES, AND DISSEMINATION
OF HEALTH EDUCATION INFORMATION.
SO I SAID 2018 WAS A WATERSHED
YEAR AND THE OTHER IMPORTANT
THING THAT HAPPENED IN 2018, SO
IN 2018, THE REPORT FROM THE
BLUE RIBBON PANEL WAS DELIVERED.
BLUE RIBBON PANEL WAS
COMMISSIONED SPECIFICALLY TO
LOOK AT THE INTRAMURAL RESEARCH
PROGRAM AT THE NATIONAL LIBRARY
OF MEDICINE.
THERE ARE MANY RECOMMENDATIONS
COMING OUT OF THE BLUE RIBBON
PANEL, BUT THESE TWO ARE
PARTICULARLY RELEVANT TO THE
LISTER HILL CENTER.
SO THE FIRST OF THESE
RECOMMENDATIONS WAS THAT AT THE
NATIONAL LIBRARY OF MEDICINE, WE
SHOULD CREATE A UNIFIED
INTRAMURAL RESEARCH PROGRAM.
BECAUSE UP TO THAT POINT,
INTRAMURAL RESEARCH AND LIBRARY
OF MEDICINE HAD BEEN TWO PLACES,
ONE IS THE LISTER HILL CENTER
AND THE OTHER IS NCBI.
SO THE BLUE RIBBON PANEL
RECOMMENDED THESE TWO RESEARCH
PROGRAMS SHOULD BE COMBINED
TOGETHER TO BE UNDER A SINGLE
SCIENTIFIC DIRECTOR.
AND THE SECOND KEY
RECOMMENDATION FROM THE BLUE
RIBBON PANEL WAS THAT THE
NATIONAL LIBRARY OF MEDICINE
SHOULD CREATE MECHANISMS TO
IDENTIFY OPPORTUNITIES THAT
WOULD MOVE RESEARCH TOOLS INTO
HARDENED SERVICES.
THAT IS, OF COURSE, BASED ON
CURRENT NEEDS AND ANTICIPATED
IMPACT OF THE RESEARCH.
SO BECAUSE OF THE BLUE RIBBON
REPORT, THE LISTER HILL CENTER
UNDERWENT EXTENSIVE
REORGANIZATION.
SO THE ONE THAT'S CALLED THE
COMPUTATIONAL HEALTH RESEARCH
BRANCH WILL ENCOMPASS THE MORE
RESEARCH-HEAVY PART OF THE
LISTER HILL CENTER.
THAT WILL -- TO JOIN THE
INTRAMURAL RESEARCH PROGRAM OF
NLM.
SO WHAT REMAINS IN THE LISTER
HILL CENTER ARE THE OTHER THREE
BRANCHES WHICH IS THE APPLIED
CLINICAL INFORMATICS BRANCH,
MORE ON THE -- SIDE OF RESEARCH
AND SCIENCE, AND THEN THE
SCIENTIFIC COMMUTING BRANCH,
WHICH IS TO SUPPORT THE
COMPUTING INFRASTRUCTURE AND
NEEDS OF THE CENTER, AND THEN OF
COURSE THE OFFICE OF THE
DIRECTOR FOR ADMINISTRATIVE AND
OTHER TASKS.
SO WITH THAT REORGANIZATION,
MAINLY TWO DIRECTIONS.
THE FIRST IS THAT INSTEAD OF
BEING A RESEARCH-CENTRIC CENTER,
SO THE LISTER HILL WILL BECOME
MORE TRANSLATION-CENTRIC.
THE MEANING IS THAT INSTEAD OF
GENERATING NEW KNOWLEDGE THROUGH
RESEARCH, WE WILL FOCUS ON
TRANSLATING RESEARCH RESULTS
INTO OPERATIONAL SOLUTIONS THAT
CAN BE IMPLEMENTED EITHER IN
HEALTHCARE OR RESEARCH OR OTHER
ENVIRONMENTS.
SO THIS ALSO MEANS THAT INSTEAD
OF BEING THE ORIGINATOR OF
RESEARCH, BECOME THE FACILITATOR
OR ENABLER OF RESEARCH.
SO TAKING AN ANALOGY FROM
CHEMISTRY, SO WE WILL BE THE
CATALYST RATHER THAN THE REAGENT
OF CHEMICAL REACTION.
THERE'S A SECOND MAIN DIRECTION
OF THE LISTER HILL CENTER WOULD
BE TO PIVOT TO A CLINICAL DATA
EMPHASIS.
SO UNDER THIS DIRECTION, WE
WOULD DO THREE THINGS.
THE FIRST IS WE SUPPORT,
FACILITATE AND ENHANCE THE USE
OF CLINICAL DATA IN BIOMEDICAL
RESEARCH.
THE SECOND IS THAT WE'LL
STRENGTHEN AND ENRICH CLINICAL
DATA SO THAT YOU CAN IMPROVE ITS
VALUE TO RESEARCH, TO THE
RESEARCH ENTERPRISE.
THE THIRD IS THAT THE LISTER
HILL CENTER WOULD SERVE AS A
NEXUS FOR ADVANCED METHODS IN
THEIR APPLICATION TO CLINICAL
DATA FOR RESEARCH ENVIRONMENT.
SO WHERE DO WE TAKE TSH THERE
ARE THREE SOURCES OF INSPIRATION
FOR OUR STRATEGY.
SO FIRST ONE, OFTEN, IS
DR. BERTAGNOLLI'S MISSION FOR
NLM AND THE SECOND IS FOR NIH
STRATEGY PLAN FOR DATA SCIENCE,
AND OF COURSE THE THIRD ONE IS
OUR OWN NLM'S STRATEGIC PLANS.
SO YOU'VE HEARD FROM DR. TABAK
THIS MORNING ABOUT THE GUIDING
PRINCIPLES, SO I'M JUST PUTTING
ALL THIS INTO THIS ONE SLIDE
HERE.
SO THE FIRST ONE IS THAT OF
COURSE OUR WORK IS NEVER -- NIH
WORK IS NEVER DONE UNTIL WE HAVE
EVERYBODY LIVING LONG AND
HEALTHY LIVES, AND THE SECOND
ONE IS THAT THE RESEARCH DOESN'T
ONLY INCLUDE THE LABORATORY, IT
ALSO EXTENDS TO CLINIC AND THE
COMMUNITY.
AND THE THIRD PRINCIPLE IS
PROBABLY THE MOST RELEVANT TO
THE LISTER HILL CENTER AND
NATIONAL LIBRARY OF MEDICINE, IS
THAT PROGRESS IS ACCELERATED
WHEN ADVANCE METHODS APPLY TO
CLINICAL DATA IN AN EQUITABLE
FASHION.
SO -- ALSO -- TO PRIMARY PARTIES
FOR NIH.
SO THIS IS WHAT YOU HEARD FROM
DR. TABAK TODAY, THE CARE FOR
HEALTH INITIATIVE, THAT WE NEED
TO CONNECT RESEARCH WITH PRIMARY
CARE TO OPTIMIZE PATIENT
OUTCOMES.
AND THE SAME PRIORITY IS THAT WE
SHOULD EXPAND BIOMEDICAL
RESEARCH AND TO USE NEW RESEARCH
AND IMPROVE HEALTH OUTCOMES.
IN HER TALK, DR. BERTAGNOLLI --
IN ORDER TO MAKE BEST USE OF
THIS INFLUX OF DATA, TO MAKE --
EXPANDED BY MEDICAL DATA AND
RESEARCH DATA.
AND THE FOCUS SHOULD BE ON DATA
USE, NOT ONLY ON DATA SHARING OR
STORAGE.
AND THE SECOND IMPORTANT POINT
FROM HER TALK IS THAT WE SHOULD
GET ALL THE RIGHT DATA IN THE
HAND OF PEOPLE ASKING IMPORTANT
QUESTIONS.
AND WE SHOULD ALSO INTEGRATE
WITH DATA FROM VARIOUS SOURCES,
INCLUDING BASIC AND SOCIAL
SCIENCE RESEARCH, AND ALSO
PUBLIC HEALTH AND OF COURSE
CLINICAL CARE.
SO THE NEXT SET OF MARCHING
ORDERS THAT WE'RE TAKING FROM
THE NIH STRATEGIC PLAN FOR DATA
SCIENCE, AND HERE IS OUTLINED
FIVE PILLARS OF DEVELOPMENT
WITHIN THAT STRATEGY PLAN.
SO THIS INCLUDES THE BUILDING OF
A DATA INFRASTRUCTURE, BUILDING
A MODERNIZED DATA ECOSYSTEM,
PROVIDING DATA MANAGEMENT
ANALYTICS AND TOOLS, AND THEN TO
BUILD A WORKFORCE, AND FINALLY
TO ENSURE THAT STEWARDSHIP
AND -- OF ALL THESE INITIATIVES.
SO -- STRATEGIC PLAN, I FIND
THIS DESCRIPTION HERE
PARTICULARLY SALIENT TO THE
LISTER HILL CENTER.
SO HERE IS ACCORDING TO -- DATA
SCIENCE ACROSS A WIDE VARIETY OF
FIELDS, THEY SPEND A LOT OF
THEIR TIME, UP TO 80% OF THEIR
TIME DOING WHAT THEY LEAST LIKE
TO DO, THAT IS TO COLLECT
EXISTING DATASETS AND THEN TO
ORGANIZE DATA.
THAT LEAVES ONLY LESS THAN 20%
OF THE TIME TO DO REAL WORK,
THAT IS, TO DO THE RESEARCH AND
LEAD TO NEW DISCOVERY.
SO IMAGINE IF WE CAN REDUCE THAT
80% BY PROVIDING SERVICES THAT
WOULD MAKE IT EASIER FOR
RESEARCHERS TO FIND AND USE AND
TO ACCESS THE DATASETS.
THIS SHOULD FREE UP A LOT OF THE
TIME TO DO AN IMPORTANT JOB.
SO OF COURSE WE HAVE TO REFER TO
OUR OWN NLM STRATEGIC PLAN, AND
YOU'RE ALL VERY FAMILIAR WITH
THIS, OF COURSE, THE THREE
STRATEGIC GOALS.
ACCELERATE DISCOVERY THROUGH
ADVANCED HEALTH THROUGH
DATA-DRIVEN RESEARCH, REACH
PEOPLE IN MORE WAYS THROUGH
ENHANCED DISSEMINATION AND
ENGAGEMENT AND BUILD A WORKFORCE
FOR DATA-DRIVEN RESEARCH AND
HEALTH.
PARTICULARLY RELEVANT TO
CLINICAL DATA, THIS IS WHAT I'VE
GOT.
SO -- LONG BE RECOGNIZED AS --
MANY HEALTH DATA STANDARDS
EFFORTS WE'VE -- DEVELOP OR
PROMOTE IMPORTANT HEALTH DATA
STANDARDS.
AND SO IN THAT STRATEGIC PLAN,
WE ARE URGED TO LEVERAGE THIS
AUTHORITY, THESE SERVICES,
RESOURCES, TO FACILITATE THE
APPLICATION OF STANDARDS TO --
DATA IN ORDER TO PROMOTE AND
ENHANCE INTEROPERABILITY.
AND ON CLINICAL DATA, NLM SHOULD
FACILITATE FOR EFFECTIVE
STEWARDSHIP OF DATA GENERAL GENN
THE COURSE OF CLINICAL CARE,
WITH HEALTH RECORD SYSTEMS AND
WE SHOULD FOSTER LINKAGE AND
RE-USE OF THIS DATA ACROSS
MULTIPLE PLATFORMS.
LAST BUT NOT LEAST IS HOW YOU
CAN ADVANCE RESEARCH IS THAT WE
SHOULD PARTNER WITH SCIENTISTS
ACROSS NIH TO GENERATE RESOURCE
QUESTIONS AND IDENTIFY VALUE
SOLUTIONS.
SO THE REST OF THE TALK, I'LL
HIGHLIGHT SOME OF OUR ACTIVITY
AND GE, THEN, I WILL DIVIDE THEM
INTO MAIN CATEGORIES ACCORDING
TO THE NEW DIRECTION AT THE
LISTER HILL CENTER.
THE FIRST IS A GROUP OF
ACTIVITIES THAT WILL BE UNDER
THE TRANSLATIONAL SCIENCE
CATEGORY.
SO THESE INTELLIGENT UMLS
EDITING ASSISTANCE, MALARIA
SCREENING, RETINAL DISEASES
SCREENING.
UNDER CLINICAL DATA SCIENCE,
I'LL TALK ABOUT FISMA, MODERATE
ENVIRONMENT FOR PROTECTED HEALTH
INFORMATION, CENTER FOR CLINICAL
OBSERVATIONAL INVESTIGATIONS,
CCOI, AND SUPPORT NIH CLINICAL
DATA INITIATIVES.
SO FIRST IS THE INTELLIGENT UMLS
EDITS ASSISTANCE.
THE UNIFIED MLS SYSTEM -- IT
BEEN RELEASED EVERY SIX MONTHS
WITH A NEW VERSION, AND FOR
EVERY NEW VERSION, THERE'S OVER
100,000 NEW TERMS OF VARIOUS
SOURCE TERMINOLOGIES THAT NEED
TO BE INCORPORATED INTO THE
UMLS.
AND THE UMLS EDITORS HAVE TO
TASK TO DETERMINE IF THE NEW
TERM THAT COMES IN NEEDS TO BE
GROUPED INTO AN ECK SITTING UMLS
CONCEPT AND FOR YOUR
INFORMATION, OVER 3 MILLION CON
SETS RIGHT NOW -- AND OUR OWN
RESEARCH SHOWS THAT USING DEEP
LEARNING AND OTHER INTELLIGENCE
TECHNIQUES, WE CAN ACTUALLY
OUTPERFORM ALGORITHMS THAT WERE
JUST BASED ON LEXICAL
PROPERTIES.
SO THIS IS WHAT IS BEING USED
NOW IN THE UMS ENVIRONMENT --
RELY HEAVILY ON LEXICO
NORMALIZATION.
IN THE COLLECTION OF -- TERMS ON
THE LEFT, YOU CAN SEE THAT THEY
ARE LIKE 11, 12 TERMS, BUT IF
YOU NORMALIZE THEM, THEN THIS
NORMALLATION IS EXTRACTING FROM,
EXAMPLE, THE PUPPER CASE, LOWER
CASE, WORD ORDER, -- THEY ALL
BECOME -- OH, THESE TERMS THEY
ALL MEAN THE SAME THING, THEY
SHOULD BELONG TO THE SAME UMLS
CONCEPT.
BUT LEXICO -- YOU APPLY TO --
YOU WILL NOT BECOME THE SAME
STRAIN.
SO WHAT THEY FOUND IS THAT USING
DEEP LEARNING AND A.I., WE CAN
IMPROVE THE PERFORMANCE.
I CALL THIS PROCESS NOT LEXICAL
NORMALIZATION BUT -- BASED ON
SEMANTIC NORMALIZATION, SYNONYMY
BASED ON MEANING, USAGE AND
CONTEXT.
YOU KNOW MALIGNANT NEOPLASM OF
LUNG EQUALS LUNG CANCER -- EXACT
SAME WORDS TOGETHER, RIGHT,
BUT -- AN EXAMPLE IS ACUTE
KIDNEY INSUFFICIENCY, AND ACUTE
RENAL FAILURE, SO THE SYNONYMY
CAN BE RECOGNIZED BY DEEP
LEARNING BUT NOT BY LEXICAL
NORMALIZATION ALONE.
SO THIS IS STILL A RATHER NEW
PROJECT, AND SO BEFORE I GO INTO
THAT, LET'S LOOK AT THE TABLE ON
THE RIGHT.
SO THIS IS WHAT I MEAN WHEN I
SAY THAT, OKAY, THE DEEP
LEARNING AND THE A.I.,
EVERYTHING CAN OUTPERFORM
EXISTING LEXICALLY BASED -- THE
TOP PART OF THE TABLE IS THE
CURRENT METHOD.
AND THE LOWER PART IS USING DEEP
LEARNING.
YOU CAN SEE THAT BOTH IN THE --
OUTPERFORMS THE CURRENT LEXICAL
METHOD.
TROYING TO -- THIS NEW ALGORITHM
INTO THE ACTUAL -- AND WE'VE
IDENTIFIED TWO USE CASES OF HOW
WE CAN USE THIS METHOD.
THE FIRST ONE IS QUALITY
ASSURANCE, THAT MEANS WE CAN
LOOK AT THE EXISTING UMLS
CONCEPT AND TO SEE -- TWO --
ACTUALLY MEAN THE SAME THING AND
SHOULD BE MERGED TOGETHER.
THE SECOND USE CASE THAT WE
IDENTIFIED IS THAT WE CAN
PROVIDE REALTIME ASSISTANCE,
WHEN THEY HAVE TO -- THAT ARE
COMING IN.
SO THE PLAN HERE IS TO -- METHOD
AT THE EXISTING -- PLATFORM AND
FOR TESTING IN THE COMING THREE
MONTHS.
THIS IS NOT JUST A LISTER HILL
CENTER INITIATIVE.
WE HAVE COLLABORATION ACROSS
THREE DIVISIONS OF THE LIBRARY.
SO LISTER HILL, OCCS AND USCD AS
WELL.
SO THE SECOND PROJECT I WOULD
LIKE TO HIGHLIGHT IS THE MALARIA
SCREENER, WHICH IS LED BY
STEPHEN JAEGER.
AS YOU ALL KNOW, MALARIA IS A
VERY IMPORTANT DISEASE GLOBALLY,
AND EVERY YEAR THAT OVER
200 MILLION CASES AND AROUND
600,000 DEATHS.
AND EVERY TWO MINUTES, A CHILD
DIES OF MALARIA.
EARLY DIAGNOSIS IS ESSENTIAL TO
GUIDE TREATMENT AND PREVENT
OUTCOMES OF THE DISEASE --
IDENTIFIED BY -- THAT IS THE --
FOR THIS PROJECT.
SO IF THE RESEARCH PART OF THIS
PROJECT HAS SHOWN THAT USING THE
DEEP LEARNING AND A.I., IT'S
POSSIBLE TO REPLACE THE -- THAT
HUMAN -- PROCESS OF IDENTIFYING
THIS INFECTED BLOOD CELLS AND TO
COUNT THEM.
SO THE MALARIA SCREENER IS AN --
APPLICATION THANDROID SMARTPHONN
THAT CAN BE USED QUITE EASILY
COUPLED -- SO AS YOU CAN SEE
FROM THE LOWER RIGHT-HAND --
VERY WELL WITH HUMAN EXPERT
COUNTS.
SO THIS SCREENER HAS BEEN FIELD
TESTED AND IS SHOWN TO BE ABLE
TO REACH THE WSM HO3 -- AND IF A
MOST -- BATTERY CELLS.
SO CURRENTLY WE'RE DEVELOPING A
DESKTOP VERSION OF THE MALARIA
SCREENER, NOT IN HUMANS BUT IN
RODENTS.
WHY IS THIS IMPORTANT?
BECAUSE A RODENT IS A VERY
USEFUL MODEL FOR TESTING --
VACCINES FOR TESTING DRUG
CANDIDATES.
SO THE LAST TRANSLATIONAL
PROJECT I WANT TO TALK ABOUT IS
ABOUT THE PRESCREENING OF
RETINAL DISEASES.
THIS IS LED BY -- KIM, AND WE
KNOW THAT RETINAL TEAS DISEASESA
CURRENT -- SOMETIMES ALREADY TOO
LATE.
SO EARLY DETECTION IS VERY
IMPORTANT IN THE PREVENTION OF
BLINDNESS, BY RETINAL DISEASES.
-- UNDERSERVED AREAS THAT IT'S
DIFFICULT TO FIND A SERVICE FROM
AN OPHTHALMOLOGIST TO ASSESS
FUNDAL IMAGES.
SO THE MOTIVATION FOR THIS IS
THAT TO DEVELOP A.I. -- PACED --
OF RETINAL DISEASES.
AND THE DISEASE THAT IS BEING
FOCUSED ON HERE IS GLAUCOMA,
WHICH IS A LEADING CAUSE OF
BLINDNESS FOR PEOPLE OVER THE
AGE OF 60.
AS YOU CAN SEE FROM THE RIGHT
LOWER CORNER AGAIN, BASED ON TWO
DATASETS, THE EVALUATION IS THAT
THIS METHOD HAS ACQUIRED A VERY
HIGH ACCURACY AND SENSITIVITY
OKAY.
SO IT'S CURRENTLY BEING
DEVELOPED LIKE A MOBILE
APPLICATION, SO THAT PEOPLE CAN
USE THE APPLICATION AND COUPLE
IT WITH IMAGES CAPTURED FROM THE
FUNDOSCOPE TO SCREEN FOR RETINAL
DISEASES.
IN THE FUTURE, WE'RE HOPING TO
USE IT FOR RETINOPATHY OR
MACULAR DEGENERATION.
NEXT I'M GOING TO SHIFT GEAR
INTO THE DATA SCIENCE
INITIATIVES.
SO THE FIRST ONE IS THE
FISMA-MODERATE ENVIRONMENT OF
HEALTH RELATED DATA ABOUT
INDIVIDUALS, OR FEHRDI.
THIS IS A CENTRALIZED SECURE
STORAGE OF IDENTIFIABLE AND EVEN
DE-IDENTIFIED PATIENT-LEVEL
DATA.
THIS IS -- OF STATING DATA IN
NETWORK DRIVES OR EVEN LOCAL
DEVICES.
SO CURRENTLY THEY'RE USING THE
DATA BS, AMAZON WEB SERVICES,
AND WE HAVE ESTABLISHED THIS
AS -- MODERATE ENVIRONMENT.
AND IN FUTURE, WE'LL -- WE'RE
ALSO LOOKING TO SEE IF THERE'S A
NEED TO EXPAND TO OTHER
PLATFORMS LIKE AZURE AND THE
GCP, GOOGLE CLOUD PLATFORM.
SO THE DATA CUSTODIAN IS
RESPONSIBLE FOR DATA ACQUISITION
AND VETTING OF SOURCES, DATA USE
AGREEMENT AND TERMS OF USE AS
WELL.
SO CURRENTLY THE TOTAL IS ABOUT
2 TERABYTES.
HERE YOU CAN SEE THE IMAGING, HR
DATA, REGISTRY DATA -- AS WELL.
SO I'M RUNNING A BIT LATE SO I'M
GOING TO TALK A LITTLE FASTER.
SO NEXT I'M GOING TO TELL YOU
ABOUT CCOI.
SO THE MAIN GOAL OF CCOI IS TO
LOWER BARRIERS FOR RESEARCHERS
TO FIND AND USE LARGE CLINICAL
DATASETS.
WE'VE COINED THE TERM CLINICAL
DATA CONCIERGE SO I THINK WE'LL
DESCRIBE THE KIND OF SERVICE
THAT WE'LL PROVIDE TO CLINICAL
RESEARCHERS.
SO WE HOPE THAT WILL BECOME A
ONE-STOP SHOP FOR INFORMATION OF
METADATA ABOUT THE DATASETS, AND
NOT JUST THAT, IN THE FUTURE, WE
HOPE THAT BASED ON THIS
PLATFORM, WE WILL BE ABLE TO
DEVELOP TOOLS AND SERVICES, LIKE
YEE KNOW TYPING -- CLEARING
ABILITIES FOR -- PLANNING FOR
RESEARCHERS, AND THEN IN THE
FUTURE, WE'LL HOPE TO PONDER
WITH PARTNERSHIP IN RESEARCH
SUCH AS OTHER NIH ICs, SO THAT
YOU CAN PROVIDE ASSISTANCE TO
THEM IN DATA ACCESS, DESIGN AND
STATISTICAL ANALYSIS.
SO THIS WEBSITE IS JUST LAUNCHED
A FEW MONTHS AGO.
PLEASE FEEL FREE TO TAKE A LOOK.
AND ON THE WEBSITE, WE HAVE FOUR
DATASETS NOW.
ALL OF US, THE CMS MEDICARE DAY
DATABASE, AND ALSO THE UK
BIOBANK.
SO ON THE WEBSITE, YOU CAN DRILL
DOWN ON THESE DATASETS TO SEE
WHAT IS IN THEM, INCLUDING THE
PATIENT COUNT AND SO ON, AND
TRUE DOWN TO THE LEVEL OF
CONDITIONS, DIAGNOSIS, ANTIVIRUS
DRUGS, AND SO ON, AND THERE'S
ALSO A NICE BREAKOUT OF GENDER,
RACE -- SO THE NICE THING IS WE
PUT ALL THE DATASETS IN ONE
TABLE SO THAT YOU SEE SIDE BY
SIDE COMPARISON.
AMONG THESE
DATASETS.
SO ONE THING WE'VE DONE IS THAT
WE'VE TALKED TO RESEARCHERS THAT
IS THE FUTURE TARGETS OF OUR
USES, TO SEE WHAT THEY HAVE --
WHAT THEY NEED AND WHAT WE NEED
TO DEVELOP TO FIT THEIR NEEDS.
SO WE'VE UNDERTAKEN SOME NEEDS
ASSESSMENT INTERVIEWS WITH
RESEARCHERS AND FOCUSED ON THESE
AREAS, LIKE DATA ACCESS, DATA
LINKAGE, AND DATA TOOLS AND SO
ON, TO GET THEIR REQUIREMENTS.
SO THE NEXT STEPS IS WE PLAN TO
ACQUIRE NEW DATA SOURCES AND ON
OUR RADAR IS THE NATIONAL
EMERGENCY MEDICAL SERVICES
INFORMATION SYSTEM, OR THE THE
NEMSIS, AND ALSO THE HEALTHCARE
COST AND UTILIZATION PROJECT OR
HCUP DATA.
WE ADD FUNCTIONALITIES LIKE
QUERY TOOLS, SO ON, AND WE ARE
PLANNING TO DO PUB BLISS IT,
LIKE DEVELOP OUTREACH MATERIALS
AND PRESENT AT MEETINGS AND
CONFERENCES.
SO NEXT, I'M GOING TO TALK
ABOUT, JUST VERY QUICKLY, ABOUT
HOW WE PLAN TO SUPPORT THE NIH
VISION.
SO YOU'RE SEEING A LOT OF THIS
FROM THIS MORNING'S PRESENTATION
FROM DR. TABAK.
SO I'LL JUST BRIEF YOU SOME OF
THE SLIDES.
SO NLM IS REQUIRED TO BE THE
LEADER IN INTERNATIONAL
COMMUNITY OF BIOMEDICAL DATA
SCIENCE ORGANIZATIONS.
WE ARE TO BE THE FRONT DOOR TO
PROVIDE ACCESS TO DATA AND ALSO
ANALYTICAL TOOLS.
WE HAVE TO HELP TO MAINTAIN AN
OPEN -- YOU HAVE DATA ECOSYSTEM,
AND THIS LAST SLIDE IS ACTUALLY
A DESCRIPTION OF SOME PROJECT
THAT I'M -- BUT WE'VE BEEN
ENGAGED WITH OTHER OFFICES IN
THE NIH TO BUILD KIND OF A NEW
PLATFORM OF VERY -- OLD,
AMBITIOUS PROJECT THAT WE'RE
TAKING DATA OUT DIRECTLY FROM
HOSPITALS AND GOING THROUGH THE
PROPER -- SO THEY CAN BE USED
NOT JUST FOR NIH RESEARCHERS BUT
ALSO FDA AND OTHER FEDERAL
AGENCIES AS WELL.
SO THE NIH AND HHS VISION FOR
THE FUTURE OF HEALTHCARE IS THAT
ALL THIS DATA CAN BE PULLED
TOGETHER.
THE IMPORTANT THING ABOUT THIS
SLIDE IS THAT THE OWNERSHIP AND
PERMISSION IS CONTROLLED BY THE
PATIENTS.
SO THE PATIENTS CAN GIVE
PERMISSION, CAN RESTRICT
PERMISSION TO -- SO THE GOAL IS
TO TRANSFORM FROM WHERE THIS IS
ALL IN SILOED STORAGE SEISES, S,
THEY CAN GENERATE A COMPUTABLE
HEALTH ECOSYSTEM.
SO LAST BUT NOT LEAST, I'D LIKE
TO INTRODUCE MY TEAM TO THE
BOARD.
SO PLEASE MEET JIM, YOLANDA,
HOWARD, AND DAMON.
MY THREE BRANCH CHIEFS, AND WITH
THAT, I'M HAPPY TO TAKE ANY
QUESTIONS OR RECOMMENDATIONS
FROM THE BOARD.
>> THANK YOU.
>> ONE OF YOUR SLIDES, YOU
SHOWED INTRAMURAL RESEARCH
PROGRAM NOW AS A SEPARATE
ENTITY.
>> YES.
>> ARE YOU DOING INTRAMURAL
RESEARCH WITH THE CLINICAL
CENTER?
>> THE MEAN THE LISTER HILL
CENTER?
>> THE NIH CLINICAL CENTER.
THAT BIG HOSPITAL OVER THERE.
THE NATION'S RESEARCH HOSPITAL,
THEY LIKE TO CALL IT.
>> SO I WOULD SAY THAT EVEN
THOUGH THE PRIMARY GOAL OF THE
LISTER HILL CENTER IS NO LONGER
ORIGINAL RESEARCH -- ENGAGED --
APPLIED RESEARCH INTO CLINICAL
DATA SCIENCE.
SO AS YOU CAN SEE FROM THE LIST
OF DATASETS THAT ARE CURRENTLY
IN THE -- ENVIRONMENT, ONE OF
THE DATASETS I THINK ORIGINATES
FROM THE CLINICAL CENTER.
IF I'M NOT MISTAKEN -- FROM
THE -- THAT YOU BUILD, JIM.
SO I THINK THERE ARE SOME
CHANNELS IN WHICH WE ARE STILL
COLLABORATING OR USING THE
RESOURCES FROM THE CLINICAL
CENTER TO FURTHER OUR MISSION IN
CLINICAL DATA SCIENCE AND
RESEARCH.
>> YOU SAID THAT YOU'D DO
RESEARCH ON PROVISION OF
KNOWLEDGE TO THE POINT OF CARE,
DECISION SUPPORT, USE OF, YOU
KNOW, KNOWLEDGE AND LITERATURE
RESOURCES FOR PATIENT CARE, THE
CLINICAL CENTER IS SITTING RIGHT
THERE.
IT SEEMS LIKE A PLACE WHERE YOU
COULD BE DOING RESEARCH WITH
REAL WORLD PATIENTS AND --
>> YES, I THINK IT DEFINITELY
GETS -- THAT IS DEFINITELY TRUE,
AND SO THERE ARE MANY AREAS IN
MEDICAL INFORMATICS IN WHICH
RESEARCH CAN BE -- AND
TRANSLATION INTO THINGS --
CLINICAL ENVIRONMENT TO IMPROVED
OUTCOME.
-- AND THE OTHER -- SYSTEMS AND
SO ON, I THINK THAT IS
DEFINITELY ONE AREA THAT WE CAN
LOOK INTO.
IF THERE ARE SUITABLE RESEARCH
PROJECTS AND IF THEY'RE SUITABLE
COLLABORATION OPPORTUNITIES, I
THINK WE'D DEFINITELY BE
LOOKING -- I MEAN, JUST LIKE
WE'RE LOOKING OUT TO NIH, THE
OTHER 27 ICOs, COLLABORATION
IN TERMS OF RESEARCH -- CLINICAL
CENTER IS DEFINITELY INCLUDED.
>> [INAUDIBLE] AND THEN OPEN FOR
EVERYBODY.
>> ALL RIGHT.
I'LL SAY MINE QUICK.
THANK YOU SO MUCH FOR THE
OVERVIEW OF THE HISTORY AND SOME
OF THE INITIATIVES THAT ARE
HAPPENING.
I'M WONDERING IF YOU COULD TALK
A LITTLE BIT ABOUT THE DATA
ANALYSIS, BECAUSE I KNOW FOR THE
ALL-OF-US DATA, THE IT HAS TO BE
DONE IN A CONTROLLED --
DEPENDING WHAT YOU'RE DOING, SO
I'M WONDERING WITH YOU A THE
DATA BEING HARMONIZED AND
PUTTING IT TOGETHER, WHERE WOULD
THE ANALYSIS BE DONE?
>> IT DEPENDS VERY MUCH ON
THE -- RESOURCE THAT WE'RE
TALKING ABOUT, SO TAKING FOR
EXAMPLE ALL-OF-US WILL BE
DIFFERENT FROM CMS DATA.
CMS, WE ARE -- VIRTUAL RESEARCH
DATA CENTER, IT IS TOTALLY
ENCLOSED SYSTEM.
YOU CANNOT EVEN -- DATA OUT OF
IT.
SO RESEARCH -- ANALYTICS HAS TO
HAM ON THEIR PLATFORM, SO THAT
WILL BE THE MODEL WE NEED TO
FOLLOW.
BUT WHAT WE PROVIDE, CCOC --
FIRST OF ALL WE PROVIDE INSIGHTS
FOO THE DATA SOURCE, SO WHAT IT
IS, AND WHAT -- THE LIST OF
PUBLICATIONS OF DISEASE AREAS
THAT THIS DATASET HAS SUPPORTED
IN THE PAST.
SO THAT THE RESEARCHERS WILL
HAVE A BETTER IDEA OF WHETHER
THIS DATASET IS SUITABLE TO
ANSWER THEIR CLINICAL QUESTIONS
OR NOT.
SO THE FIRST STEP IS TO PROVIDE
INFORMATION ABOUT THE DATA
SOURCES.
AND THE SECOND THING THAT WE CAN
PROVIDE IS A KIND OF ASSISTANCE
IN ACCESSING THE DATA.
SO -- WHAT WE SAY IS THAT WE CAN
PROVIDE PROXY ACCESS TO THE
DATA.
FOR EXAMPLE, IF A RESEARCHER
FROM NCI IS INTERESTED IN
LOOKING AT A CERTAIN CANCER IN
THE MEDICARE POPULATION, SO WE
CAN PROVIDE -- BECAUSE WE HAVE
ALREADY ACQUIRED SEATS TO THE
MEDICARE DATABASE SO WE CAN
COLLABORATE WITH THEM AND DESIGN
WHAT THINGS WE SHOULD LOOK AT,
WHAT INFORMATION IS AVAILABLE
THAT IS IMPORTANT TO ANSWER THE
QUESTION, AND WE CAN PROVIDE --
ADVISE CONSULTATION ON TA FRONT.
AND ALSO WE CAN WORK WITH THEM
TO DO THE ANALYSIS TOGETHER, WE
CAN DO THE DATA POOLING AND WE
CAN SHARE THE RESULTS WITH THEM
SO THAT WE CAN DISCUSS WHAT DO
YOU THINK, DOES THIS ANSWER YOUR
QUESTION OR ARE THERE THINGS
THAT YOU THINK YOU'D NEED TO
LOOK FOR ON AFTER SEEING
PRELIMINARY RESULTS, SO THAT IS
AN ITERATIVE PROCESS THAT HOPE
THEY WILL ENGAGE THE OTHER NIH
RESEARCHERS IN -- WITHIN THE
SERVICES THAT WE PROVIDE BY
CCOI.
>> SO JUST SO THAT I UNDERSTAND,
BECAUSE THESE ARE DIFFERENT
SOURCES OF DIFFERENT PLATFORMS,
SO YOU'LL SERVE AS THE HUB WHERE
YOU WOULD PUT THE DATASETS
TOGETHER?
>> YES, EXACTLY.
SO WE DON'T NECESSARILY GATHER
ALL THE DATA IN HOUSE IN A
CENTRALIZED REPOSITORY, BUT WE
WOULD PROVIDE ACCESS TO THE
DATA.
AND ALSO -- THIS DATA, THEY NOT
ONLY RESIDE IN DIFFERENT
REPOSITORIES, THEY CAN HAVE
DIFFERENT DATA FORMATS,
DIFFERENT DATA STAN DARS, THOUGH
ARE ALSO IMPORTANT THINGS TO
CONSIDER WHEN YOU HAVE TO DO
CROSS PLATFORM ANALYSIS.
SO RIGHT NOW WE'RE FOCUSING VERY
MUCH ON THE -- COMMON DATA MODEL
AND -- AS WE THINK IT'S A VERY
US A FULL MODEL AND RESOURCES
THAT WE WILL USE TO KIND OF
HARMONIZE ACROSS DATASETS.
SO WE TRY TO MAP EVERYTHING,
VARIOUS DATASETS INTO THE -- AND
STATISTICS -- ON THE SITE,
THEY'RE ALL BASED ON THE
TERMINOLOGY RESOURCES THAT ARE
PROVIDED BY -- SO THE
CONDITIONS, YOU CAN DRILL DOWN
ON THAT AND THEY'RE ALL BASED
ON -- BECAUSE -- PROVIDE ALL
THOSE RESOURCES, THAT'S WHY I
CAN GENERATE THAT KIND OF
STATISTICS ACROSS ALL DATASETS.
>> DR. FORREST?
>> SO CCOI WEBSITE, IT'S REALLY
COOL.
THE METADATA IS EXCELLENT.
I'M CURIOUS WHAT THE STRATEGY IS
FOR SELECTING THE DATASETS.
-- I CAN'T QUITE FIGURE THAT
OUT SO IT'S STILL -- ME --
LIKELY TO BE STORED THERE.
>> YES, DEFINITELY.
SO THAT'S WHY -- CARRY ALL THOSE
NEEDS ASSESSMENTS, SO WE TALK TO
RESEARCHERS THAT ARE POTENTIAL
USERS OF CCOI AND SEE WHAT
DATASETS THEY WOULD BE
INTERESTED IN FOR CCOI TO
ACQUIRE, AND OF COURSE WE ALS
ALSO -- THE ONES WE HAD REALLY
TOP OF THE LINE -- USED BY MANY
RESEARCHERS SO IT IS KIND OF
EASY TO DECIDE TO ACQUIRE THEM,
BUT FOR OTHER DATA SOURCES, WE
WOULD DO OUR OWN REVIEW, I'LL
ASK YOU TO SAY -- THAT IS
ANOTHER THING TO CONSIDER, FOR
EXAMPLE, SOCIAL DETERMINANT OF
HEALTH, ARE THEY GOOD DATA
SOURCES, PLUS -- SYSTEM DATA
SOURCES, THEY ARE NOT VERY RICH
IN SOCIAL DETERMINANTS OF HEALTH
ARENA.
SO THERE'S MAYBE ANOTHER
CRITERIA THAT I CAN NAME THAT --
POTENTIAL GAPS IN OUR EXISTING
DATASETS THAT YOU MIGHT BE ABLE
TO FILL WL THE --
>> SO I THINK SOMETHING LIKE
CCOI SOUNDS LIKE AN INCREDIBLY
EASY TOOL TO HAVE -- ACCESS --
FOR EXAMPLE, YOU COULD BUY THIS
SPETHISSPACE -- [INAUDIBLE] CERN
DISEASE.
SO -- ALLOW ACCESS OF THIS
SUMMARY OF THE DATA, AND THAT
ALLOWS THE OPPORTUNITY TO MAKE
TOOLS WHERE PEOPLE CAN GENERATE
THEIR OWN SUMMARY.
SO IT'S SIMILAR TO, YOU KNOW,
BEING -- AN ONLINE -- IT WILL
TELL YOU YOUR -- INCIDENCE OF
LIVER CANCER AND -- AND YOU
WANT -- CONTROLLING FOR THIS AND
THAT AND BE ABLE TO SEND THAT
AND GET YOUR RESULTS OUT AND --
ACCESS TO THE ORIGINAL DATA --
THAT CAN DO THAT FOR US?
ARE YOU THINKING ABOUT DOING
SOMETHING LIKE THAT OR -- WITH
CCOI?
>> QUERY THESE DATASETS.
IT'S EXACT RI EXACTLY WHAT YOUK
ABOUT, SR. THIS -- TYPE
DEFINITION, YOU CAN -- I MEAN,
TOOLS THAT YOU CAN -- WEBSITE IN
THE FUTURE, WE HOPE THAT WILL
HAPPEN EASILY, A TOOL THAT
PEOPLE CAN BUILD EVEN THEIR OWN
CORE DEFINITION, ON OUR WEBSITE,
SO THAT WE CAN SHIP THAT TO THE
DATA SOURCE AND GET ANSWERS FOR
THEM, THAT IS THE GOAL WE'RE
TRYING TO ACHIEVE.
>> OBVIOUSLY EASY, THINK THAT
WOULD BE INCREDIBLE.
>> YES, YES.
>> ONE LAST QUESTION BEFORE WE
GO ON A BREAK?
OKAY, THANK YOU SO MUCH.
>> THANK YOU VERY MUCHMENT
>> AND NOW WE HAVE A 15-MINUTE
COFFEE BREAK.
BACK AT 2:45.
SO I'M RICHARD SCHEUERMANN,
SCIENTIFIC DIRECTOR HERE IN
CHARGE OF THE INTRAMURAL
RESEARCH PROGRAM AT NATIONAL
LIBRARY OF MEDICINE, AND I'M
GOING TO GIVE YOU AN UPDATE ON
THE ACCOMPLISHMENTS IN THE
DIVISION OF INTRAMURAL RESEARCH.
SOMETIMES I THINK WE GET SO
FOCUSED ON OUR DAY TO DAY
ACTIVITIES THAT WE MISS THE BIG
PICTURE, AND ACTUALLY PREPARING
FOR THE PRESENTATION TO THE
BOARD OF REGENTS REALLY GAVE ME
AN OPPORTUNITY TO LOOK BACK AND
SEE EVERYTHING THAT WE'VE
ACHIEVED AND WHAT WE'VE
ACCOMPLISHED OVER THE LAST YEAR,
SO I'M REALLY THANKFUL TO HAVE
THIS OPPORTUNITY TO PRESENT TO
YOU WHAT OUR INTRAMURAL RESEARCH
PROGRAM INVESTIGATORS HAVE
ACCOMPLISHED SINCE THE LAST TIME
WE MET IN PERSON IN SEPTEMBER OF
2023.
SO FIRST AND FOREMOST, WE'RE
ALWAYS ABOUT PUBLICATIONS, SO WE
HAVE -- CURRENTLY WE HAVE FLIEN
SENINESENIOR INVESTIGATORS AND X
JUNIOR TENURE TRACK
INVESTIGATORS IN THE PROGRAM.
YOU CAN SEE THE PRODUCTIVITY AS
JUDGED BY THEIR SCIENTIFIC
PUBLICATIONS IS REALLY
OUTSTANDING.
I MEAN, WE HAD 189 SCIENTIFIC
PAPERS AND REVIEW ARTICLES AND
PUBLISHED IN PEER REVIEW
JOURNALS AND ALSO PREPRINTS, AND
WE PUBLISH IN REALLY THE TOP
TIER JOURNALS, BOTH IN TERMS OF
BASIC BIOLOGICAL RESEARCH, BUT
ALSO IN JOURNALS THAT FOCUS ON
CLINICAL INVESTIGATIONS AND
HEALTH SCIENCE RESEARCH, AS WELL
AS JOURNALS THAT ARE FOCUSED ON
HARD CORE COMPUTATIONAL BIOLOGY
AND BIOINFORMATICS RESEARCH.
AND I PROVIDED A HIGHLIGHT OF
SOME OF THESE PUBLICATIONS IN
YOUR PACKAGE, SO IF YOU'RE
INTERESTED IN SEEING SOME OF THE
EXAMPLES OF SOME OF THOSE
PUBLICATION, YOU HAVE THAT IN
YOUR E BOOK.
BUT I ALSO THOUGHT I WOULD GIVE
YOU THREE EXAMPLES OF THE KINDS
OF RESEARCH THAT WE'RE
PUBLISHING.
THE FIRST ONE IS BY THE GROUP OF
A TENURE TRACK INVESTIGATOR
WITHIN THE INTRAMURAL RESEARCH
PROGRAM, XIAOFANG JIANG.
SO WE'VE KNOWN FOR A LONG TIME
THAT THERE IS A COMPOUND URO.
UROBILIN THAT'S DUE TO
CATABOLISM IN THE BLOOD CELLS.
BUT WE DIDN'T REALLY KNOW THE
DETAILS OF ALL THE ENZYMES
RESPONSIBLE FOR THE BREAKDOWN OF
HEMOGLOBIN.
SO IT TURNS OUT THAT WHAT
THEY'VE DISCOVERED IS THAT ONE
OF THE KEY ENZYMES, BILIRUBIN
REDUCTREDUCTASE, THIS INTERPLAY
BETWEEN US AS A HOST AND OUR
MYCOBIOME COMPONENT TO CONDUCT
NORMAL PHYSIOLOGY OF OUR SYSTEM.
AND THERE'S A NICE NATURE
MICROBIOLOGY PUBLICATION
DESCRIBING THESE FINDINGS, AND
ALSO THERE'S A MUSINGS FROM THE
MEZZANINE, WHERE THEY DESCRIBE
IT IN A LITTLE BIT MORE LAY
TERMS FOR PEOPLE TO UNDERSTAND
THE IMPLICATIONS OF THIS KIND OF
RESEARCH FL.
SO THE SECOND EXAMPLE I'LL GIVE
IS IN THE AREA OF GENERATIVE
A.I.
OBVIOUSLY THIS IS A HOT TOPIC
THESE DAYS.
PEOPLE ARE LEARNING MORE AND
MORE HOW TO USE THESE GENERATIVE
RETRAINED TRANSFORMER MODELS OR
GPT MODELS TO HELP SUPPORT
RESEARCH.
AND SO THIS IS A VERY
INTERESTING PAPER PUBLISHED BY
DR. LU'S GROUP WHERE THEY LOOKED
AT THE PERFORMANCE OF THIS GPT-G
MEDICAL IMAGING INFORMATION.
AND WHAT THEY -- THEY MADE A
VERY INTERESTING DISCOVERY HERE.
YOU CAN SEE KIND OF IN THE TOP
RIGHT-HAND PART, YOU SEE THE
CHALLENGE THAT THEY APPLIED IN S
MODEL TO.
YOU HAVE AN IMAGE, YOU ASK A
QUESTION FOR THE ALGORITHM TO
INTERPRET THE IMAGE, AND THEN
YOU HAVE A SERIES OF MULTIPLE
CHOICE RESPONSES TO ANSWER THAT
QUESTION.
AND WHAT THEY FOUND WAS THAT THE
LARGE LANGUAGE MODEL WAS VERY
GOOD AT ANSWER ARING THAT
MUING THAT MULTIPLECHOICE QUESTR
THE REASON BEHIND HOW THEY
ARRIVED AT THAT, THEY FOUND THE
MESSAGE WAS FLAWED.
SO THE TAKE-HOME MESSAGE IS WE
STILL HAVE TO BE QUITE CAREFUL
ABOUT HOW WE USE THESE
ARTIFICIAL INTELLIGENCE
APPROACHES BECAUSE EVEN WHEN WE
GET THE RIGHT RESULTS WE MAY NOT
BE GETTING THEM FOR THE RIGHT
REASON, SO WE HAVE TO BE CAREFUL
AND REALLY DIVING IN TO THE
DETAILS ABOUT HOW THESE MODELS
ARE WORKING.
AND THEN THE THIRD EXAMPLE I'LL
GIVE IS USING A.I. TO INTERPRET
ECHOCARDIOGRAM INFORMATION.
SO ONE OF THE THINGS WE USE
ECHOCARDIOGRAMS FOR IS TO TRY TO
ESTIMATE RIGHT ATRIAL PRESSURE,
AND WE CAN LOOK AT THE SIZE OF
THE INFERIOR VENA CAVA AS A WAY
OF TRYING TO DETERMINE OR
ESTIMATE WHAT THE PRESSURE IS.
AND IT TURNS OUT THAT THERE'S
QUITE SIGNIFICANT INTER-RATER
VARIABILITY IN USING
ECHOCARDIOGRAMS FOR THAT
PURPOSE.
SO DR. SAM ESM ER ANTAN I AND
HIS TEAM DEVELOPED A FULLY
AUTOMATED A.I. SYSTEM TO BE ABLE
TO ESTIMATE RIGHT ATRIAL
PRESSURE.
AND I THINK THE UNIQUE THING
ABOUT THIS IS THAT THEY'RE NOT
JUST LOOKING AT SNAPSHOTS OF
THESE IMAGES, BUT THEY'RE
ACTUALLY INTEGRATING THE
INFORMATION OVER TIME.
AND BY INTEGRATING THE
INFORMATION OVER TIME, THEY SEE
THAT THEY GET MUCH HIGHER
ACCURACY IN ESTIMATING PRESSURE
THAN IF THEY JUST USE SNAPSHOTS
OR IF THEY LOOK AT KIND OF THE
STANDARD KIND OF MANUAL
EVALUATION OF THE IMAGE DATA.
SO I THINK THESE ARE SOME
EXAMPLES OF THE KIND OF RESEARCH
WE'RE DOING HERE, AND MORE AND
MORE WE'RE SEEING THE ADOPTION
AND USE OF ARTIFICIAL
INTELLIGENCE IN OUR RESEARCH
PROGRAMS BUT IN A VERY CRITICAL
WAY, WHERE WE'RE REALLY TRYING
TO UNDERSTAND HOW THESE KINDS OF
TECHNIQUES CAN BE USED IN THESE
KINDS OF APPLICATIONS.
SO IN ADDITION TO OUR
PUBLICATIONS, MANY OF OUR
INVESTIGATORS HAVE RECEIVED SOME
NICE AWARDS AND HONORS.
I'VE LISTED THOSE HERE.
DR. EUGENE KUNE NE. WAS ELECTED
FELLOW OF THE INTERNATIONAL
SOCIETY FOR COMPUTATIONAL
BIOLOGY.
DR. DINAH DEMNER-FUSHMAN
RECEIVED A CERTIFICATE OF
SERVICE FOR SERVING ON AN
ANTI-RACISM STEERING COMMITTEE
FOR THE UNITE/ARSC PROGRAM.
TERESA PRZYTYCA RECEIVED THE
ROSALIND FRANKLIN SOCIETY
SPECIAL AWARD IN SCIENCE AND
SAMEER ANTANI WAS ELECTED FELLOW
BY THE IEEE.
SO I THINK OUR INVESTIGATORS ARE
ALSO BEING RECOGNIZED BY THE
COMMUNITY FOR THEIR
CONTRIBUTIONS NOT ONLY TO
SCIENCE BUT ALSO TO SERVICE OF
THE COMMUNITY.
WE'RE FORTUNATE HERE THE A NIH
TO HAVE BASE FUNDING PROVIDED BY
NIH, BUT OUR INVESTIGATORS ALSO
TRIED TO ADD TO THAT BY TAKING
ADVANTAGE OF OPPORTUNITIES FOR
ADDITIONAL FUNDING THAT WE HAVE
AVAILABLE TO US.
SO HERE'S SOME EXAMPLES OF SOME
ADDITIONAL INTRAMURAL FUNDING
OUR INVESTIGATE ARE ORS HAVE BRT
INTO THE INSTITUTION, SEVERAL
AWARDS FROM BOTH ODSS AND THE
OFFICE OF AUTOIMMUNE DISEASE
RESEARCH TO WORK ON VERY
SPECIFIC KINDS OF TARGETED
RESEARCH OPPORTUNITIES.
AS YOU PROBABLY KNOW, OUR
INVESTIGATORS ARE EVALUATED BY A
BOARD OF SCIENTIFIC COUNSELORS.
THIS IS JUST THE SCHEDULE AND
WE'VE HAD THREE OF OUR
INVESTIGATORS WERE EVALUATED
RECENTLY OVER THE LAST FEW
MONTHS AND THEN WE HAVE A SERIES
OF INVESTIGATORS WHO WERE GOING
TO BE EVALUATED IN THE NEAR
FUTURE.
ONE THING THAT I'LL HIGHLIGHT
HERE IS THAT AS A RESULT OF THE
EVALUATION FOR DR. DEMNER
FUSHMAN, THE BOARD OF SCIENTIFIC
COUNSELORS RECOMMENDED SHE BE
PUT UP FOR PROMOTION TO TENURE.
SHE'S CURRENTLY A TENURE TRACK
INVESTIGATOR, SO THEY REALLY
APPRECIATED HER WORK AND IT
FEELS LIKE SHE'S READY TO MOVE
FORWARD AND BE CONSIDERED FOR
TENURE.
SO IN ADDITION TO OUR CURRENT
GROUP OF INVESTIG INVESTIGATORST
OF MY RECRUITMENT PACKAGE, I
JOINED ACTUALLY ONE YEAR AGO
TODAY, THERE WAS A COMMITMENT BY
NLM TO EXPAND OUR RESEARCH
PROGRAM, AND SO WE ARE IN THE
PROCESS OF ACTIVELY RECRUITING
NEW INVESTIGATORS TO JOIN US.
AND WE'RE DOING THIS IN TWO
WAYS.
ONE IS, WE'RE THINKING
STRATEGICALLY.
THERE ARE CERTAIN RESEARCH AREAS
THAT WE WANT TO FILL IN TO KIND
OF BROADEN OUR RESEARCH
PORTFOLIO, AND THEN CAN WE ALSO
BE OPPORTUNISTIC AND SEE --
IDENTIFY THE BEST AND BRIGHTEST
THAT ARE OUT THERE REGARDLESS OF
WHAT RESEARCH AREA THEY'RE
WORKING IN AND RECRUIT THEM TO
JOIN OUR PROGRAM.
AND SO IN TERMS OF OPPORTUNISTIC
RECRUITMENT, WE HAVE THIS
PROGRAM AT NIH CALLED THE
STADTMAN PROGRAM AND THEY
IDENTIFY CANDIDATES ACROSS ALL
OF NIH SO WE HAVE THE
OPPORTUNITY TO LOOK AT THOSE
APPLICANTS AND PICK THOSE THAT
MIGHT BE GOOD FIT FOR US HERE AT
NLM.
BUT WE ALSO DECIDED THAT WE WANT
TO TAKE SOME STRATEGIC DIRECTION
AND IDENTIFY A FEW RESEARCH
AREAS WE MIGHT WANT TO FILL.
ONE OF THOSE IS IN THE AREA OF
SINGLE CELL GENOMIC ANALYSIS,
REALLY FOCUSING ON INVESTIGATORS
THAT ARE DEVELOPING NOVEL
METHODS USING ROBUST STATISTICAL
APPROACHES AND ARTIFICIAL
INTELLIGENCE APPROACHES TO
INTERPRET THAT KIND OF DATA,
WHICH IS BECOMING VERY PO POPULR
THESE DAYS.
SO WE SET U OUT A CALL FOR
APPLICANTS, WE RECEIVED 24
APPLICATIONS.
WE HAVE A SEARCH COMMITTEE THAT
NARROWED THOSE DOWN TO FOUR
FINALISTS THAT WE'VE BEEN
INTERVIEWING IN PERSON.
OUR FOURTH INTERVIEW IS ACTUALLY
TODAY, WHICH IS WHY I HAD TO
STEP OUT THIS MORNING.
BUT I HAVE TO SAY WE HAVE AT
LEAST THREE OUTSTANDING
CANDIDATES FOR THIS OPEN
POSITION.
AND SO WE'RE VERY HOPEFUL THAT
WE'LL BE ABLE TO RECRUIT ONE OF
THEM TO JOIN US IN THE NEAR
FUTURE.
ON DECK, WE HAVE -- WELL,
ACTUALLY I'M GOING TO COME BACK
TO THE CHRB BRANCH CHIEF,
BECAUSE I WANT TO TALK A LITTLE
BIT ABOUT THE REORGANIZATION
TH.ONE OF THE THINGS WE DO, WE E
AN INTERNSHIP PROGRAM, THIS YEAR
WE ENDED UP WITH 32 INTERNS WHO
JOINED US AT NLM OVER THE SUMMER
FROM 28 DIFFERENT INSTITUTIONS
ACROSS THE UNITED STATES.
THAT INCLUDED HIGH SCHOOL
STUDENTS, UNDERGRADS, MASTER'S
DEGREE STUDENTS AND WE ALSO EVEN
HAD ONE MEDICAL STUDENT.
THEY ENDED UP THEIR SUMMER
EXPERIENCE BY PRESENTING
POSTERS, BOTH AT THE NLM
POSTER -- SORRY -- THE NIH
POSTER DAY AND THEN ALSO WE HAD
AN NLM POSTER DAY HERE IN THE
ATRIUM, AND THIS IS A PICTURE OF
OUR INTERNS IN THE ATRIUM AFTER
THEIR POSTER PRESENTATIONS.
AS YOU CAN SEE FROM THE PICTURE,
WE HAD AN INCREDIBLY DIVERSE
GROUP OF INTERNS, AND I THINK
PART OF THAT IS REFLECTING THE
OUTROACH ACTIVITIES THAT WE'VE
MADE TO UNDERREPRESENTED
COMMUNITIES KIND OF TELLING THEM
ABOUT THE OPPORTUNITIES THAT WE
HAVE FOR TRAINING PEOPLE IN THE
AREAS OF DATA SCIENCE AND
BIOMEDICAL INFORMATICS HERE AT
NLM, AND WE GOT A REALLY GREAT
RESPONSE, AND TERRIFIC SET OF
SUMMER INTERNS.
WE'RE HOPING THEY'LL END UP
BEING FEEDERS TO US IN THE
FUTURE, AS FUTURE GRADUATE
STUDENTS, POSTDOCS AND THINGS
LIKE THAT, AND ALSO AS
AMBASSADORS FOR OUR PROGRAM, SO
THAT WHEN THEY GO BACK TO THEIR
INSTITUTIONS, THEY'RE GOING TO
BE TELLING THEIR FRIENDS AND
COLLEAGUES AND OTHER STUDENTS
WHAT A GREAT EXPERIENCE THEY
HAVE HERE AT NLM.
SO I MENTIONED THE
REORGANIZATION.
SO THIS RECOMMENDATION CAME OUT
OF THE 2018 BLUE RIBBON PANEL
THAT WAS MENTIONED TO COMBINE
THESE TWO RESEARCH DIVISIONS
UNDER A SINGLE UMBRELLA WITH A
SINGLE SCIENTIFIC DIRECTOR, AND
SO I'M HAPPY TO REPORT THAT AS
OF LAST WEEK, THAT
REORGANIZATION HAS BEEN APPROVED
BY NIH, SO NOW WE ARE A NEW
DIVISION OF INTRAMURAL RESEARCH,
SO WE CHANGED OUR NAME FROM IRP
TO DIR.
AND THEN THIS IS THE
ORGANIZATIONAL STRUCTURE WHERE
WE HAVE THESE TWO DIVISIONS, THE
COMPUTATIONAL HEALTH RESEARCH
BRANCH FROM LISTER HILL AND THE
COMPUTATIONAL BIOLOGY BRANCH
FROM NCBI NOW ARE PART OF THIS
DIR SINGLE RESEARCH PROGRAM.
BUT I WOULD LIKE TO EMPHASIZE
THE FACT THAT EVEN THOUGH LISTER
HILL IS A SEPARATE DIVISION FROM
DIR, OUR PLAN IS TO WORK VERY
CLOSELY TOGETHER.
AND I THINK KIN WAH MADE A
REALLY NICE POINT ABOUT HOW THE
BASIC RESEARCH AND THE APPLIED
RESEARCH CAN WORK HAND IN HAND.
AND OUR GOAL IS ACTUALLY TO
REALLY MAKE THAT HAPPEN SO THAT
WE'RE NOT THESE SEPARATE SILOS,
BUT THAT WE'RE SILOS THAT
INTERACT WITH EACH OTHER AS MUCH
AS POSSIBLE.
SO THAT'S OUR GOAL.
SO THE LAST THING I WANT TO
TOUCH ON IN MY PRESENTATION IS
THAT THE OTHER THING THAT I
COMMITTED TO DO WHEN I JOINED
NLM WAS TO DEVELOP A STRATEGIC
PLAN FOR OUR DIVISION, SO THAT
WE HAVE A LONG TERM VISION ABOUT
WHERE WE WANT TO TAKE OUR
PROGRAM AND WHAT WE NEED TO DO
TO ACCOMPLISH THOSE LONG-TERM
GOALS.
SO THE END OF LAST YEAR, WE PUT
TOGETHER A STRATEGIC PLANNING
COMMITTEE THAT INCLUDES KIND OF
A MIXTURE OF JUNIOR AND SENIOR
INVESTIGATORS, TRY TO HAVE KIND
OF GENDER BALANCE AND TRY TO
BALANCE CONTRIBUTION FROM
INVESTIGATORS ON THE COMMITTEE.
WE'VE HAD MANY, MANY MEETINGS
WHERE WE'VE DISCUSSED WHAT
SHOULD BE INCLUDED IN OUR
STRATEGIC PLAN, WHAT DIRECTION
WE WANT TO TAKE, AND THEN WE
HELD AN ON-SITE TWO-DAY RETREAT
IN THE BEGINNING OF JUNE, WHERE
WE REALLY DOVE INTO THE DETAILS,
AND WE INVITED ALL THE
INVESTIGATORS, WE INVITED STAFF
SCIENTISTS, SENIOR POSTDOCTORAL
FELLOWS, OTHER MEMBERS FROM THE
NATIONAL LIBRARY OF MEDICINE WHO
ARE OUTSIDE OF OUR DIVISION,
INCLUDING NLM LEADERSHIP, AND WE
BASICALLY FOCUSED ON A SWOT
ANALYSIS.
WE LOOKED AT WHAT ARE OUR
CURRENT STRENGTHS AND WEAKNESSES
IN THE INTRAMURAL PROGRAM, AND
WHERE ARE THE OPPORTUNITIES IN
TERMS OF STRATEGIC DIRECTION
THAT WE MIGHT WANT TO HEAD, IN
TERMS OF OTHER INITIATIVES WE
MIGHT WANT TO TAP INTO, AND THEN
WHAT ARE THE THREATS OUT THERE
THAT WE NEED TO BE AWARE.
AND DURING THAT PROCESS, WE
FOCUSED ON FIVE STRATEGIC AREAS
RESEARCH, RESEARCH AND
DEVELOPMENT, TRAINING,
VISIBILITY OF OUR PROGRAM, AND
DEIA.
AND AS A RESULT OF THAT RETREAT
IN THE PRIOR PLANNING COMMITTEE
MEETINGS, WE'VE PUT TOGETHER
INITIAL DRAFTS OF OUR GOALS AND
OBJECTIVES AND OUR MISSION AND
VISION STATEMENTS.
AND SO I WILL SHOW YOU SOME
EXAMPLES OF THAT TO GIVE YOU A
SENSE FOR WHERE WE STAND IN THAT
PROCESS.
AND THEN HERE I JUST HAVE A FEW
PICTURES OF WHAT WE WERE DOING
ON THOSE TWO DAYS, HAD LOTS OF
STICKY NOTES, LOTS OF IDEAS
COMING FROM DIFFERENT PEOPLE WHO
IS A VERY INTERACTIVE KIND OF
ENVIRONMENT AND INTERACTIVE
PROCESS, AND WE CAPTURED A LOT
OF REALLY USEFUL AND INTERESTING
IDEAS ABOUT WHERE WE SHOULD BE
GOING WITH OUR PROGRAM.
SO I HAVE THESE SLIDES TO SHARE.
I'M NOT GOING TO READ THROUGH
THE VISION AND MISSION
STATEMENTS AND THINGS LIKE THAT.
MAYBE I'LL JUST -- WE DO HAVE A
SHORT VERSION OF THE MISSION
STATEMENT, WHICH I THINK IS
RELEVANT.
OUR MISSION IS TO PUSH THE
FRONTIERS OF RESEARCH IN
COMPUTATIONAL BIOLOGY AND HEALTH
INFORMATICS.
SO THAT'S NOT TOO SURPRISING,
BUT I THINK DEFINING WHAT OUR
MISSION REALLY IS, I THINK HELPS
KIND OF FRAME ON THE STRATEGIC
PLAN THAT WE WANT TO PUT
TOGETHER.
SO IN TERMS OF THE MAIN GOALS OF
THE STRATEGIC PLAN, WE
IDENTIFIED SIX KEY GOALS.
THE FIRST ONE IS TO FOSTER AND
GROW A BROAD PORTFOLIO OF
INDEPENDENT AND COLLABORATIVE
COMPUTATIONAL RESEARCH IN
BIOLOGY AND HEALTH.
TO RECOGNIZE AND ADVANCE
INNOVATIVE PROJECTS THAT PROMOTE
NLM'S MISSION THROUGH RESEARCH
AND DEVELOPMENT.
TO TRAIN THE NEXT GENERATION OF
COMPUTATIONAL RESEARCHERS IN
BIOLOGY AND HEALTH, TO RAISE THE
VISIBILITY AND NLM'S DIR
INNOVATIVE AND IMPACTFUL
RESEARCH.
TO ENABLE A ROBUST AND
SUPPORTIVE DEIA ENVIRONMENT FOR
RESEARCH, AND TO ADVANCE MODERN
APPROACHES FOR THE
ADMINISTRATION OF OUR DIR.
SO THOSE ARE OUR CURRENT SIX
DRAFT GOALS FOR OUR STRATEGIC
PLAN, AND EACH OF THOSE GOALS
HAVE A SERIES OF OBJECTIVES, SO
I JUST HAVE ONE EXAMPLE FOR OUR
FIRST GOAL TO FOSTER THIS BROAD
PORTFOLIO OF INDEPENDENT
COLLABORATIVE RESEARCH.
SO THE OBJECTIVES WITHIN THAT
GOAL ARE TO DEFINE AREAS OF
RESEARCH IN COMPUTATIONAL
BIOLOGY AND HEALTH AND IDENTIFY
NEW OPPORTUNITIES THAT WE MIGHT
WANT TO EXPLORE.
TO FOSTER RESEARCH IN RELATED
FIELDS, INCLUDING COMPUTER
SCIENCE AND ARTIFICIAL
INTELLIGENCE AND HOW THEY COULD
BE APPLIED ON BIOMEDICAL
APPLICATIONS.
TO IDENTIFY WAYS TO PROMOTE
COLLABORATIONS BOTH WITHIN OUR
DIVISION OF INTRAMURAL RESEARCH
AS WELL AS WITH EXTERNAL GROUPS,
BOTH ON NIH CAMPUS AND ALSO IN
THE EXTRAMURAL RESEARCH
COMMUNITY AS WELL.
TO CONDUCT TARGETED RECRUITMENT
TO LEVERAGE EMERGING
OPPORTUNITIES AND EXPAND OUR
PORTFOLIO COVERAGE, AND TO
IDENTIFY ONE OR MORE HIGH
RISK/HIGH REWARD PROJECTS FOR
THE DIR THAT WE MIGHT WANT TO
ENCOURAGE AS A COLLABORATIVE
PROJECT FOR OUR INVESTIGATORS.
AND SO WE'RE WORKING ON KIND OF
AN INFOGRAPHIC OF OUR STRATEGIC
PLAN.
THIS IS KIND OF THE FIRST
VERSION OF IT.
IT'S PROBABLY A LITTLE WORDY SO
WE'RE GOING TO BE WORKING ON
THAT.
BUT WE THINK HAVING SOMETHING
LIKE THIS WILL KIND OF HELP US
WITH KIND OF GETTING THE WORD
OUT ABOUT WHAT OUR INTRAMURAL
RESEARCH PROGRAM IS ABOUT AND
WHAT OUR VALUES ARE, WHAT OUR
GOALS AND OBJECTIVES ARE.
AND SO THEN I'LL JUST KIND OF
END WITH THIS.
IN TERMS OF OUR NEXT STEPS FOR
THE STRATEGIC PLAN, WE HAVE A
LOT OF MATERIAL THAT WE'VE
COLLECTED AND NOW WE NEED TO
PULL THAT TOGETHER AND PRODUCE
AN ACTUAL STRATEGIC PLAN
DOCUMENT, SO WE'LL BE WORKING ON
THAT, AND WE'RE ESTIMATING
HAVING THE FIRST DRAFT OF THAT
COMPLETED BY THE END OF THIS
CALENDAR YEAR.
THEN WE WANT TO DISTRIBUTE THAT
TO SOME KEY STAKEHOLDERS AND
THOUGHT LEADERS TO GET THEIR
FEEDBACK ABOUT WHAT OUR
STRATEGIC PLAN, OUR DRAFT LOOKS
LIKE, AND THAT INCLUDES NLM
LEADERSHIP, BUT ALSO WE WOULD
LOVE TO GET FEEDBACK FROM THE
BOARD OF REGENTS, FROM OUR BOARD
OF SCIENTIFIC COUNSELORS, AND
OTHER KIND OF RELEVANT
STAKEHOLDERS MAYBE WITHIN THE
NIH COMMUNITY ABOUT WHAT THEIR
PERSPECTIVE IS ON WHAT THEY
THINK WE SHOULD BE FOCUSED ON.
AND THEN WE ALSO, BESIDES HAVING
KIND OF THESE HIGH LEVEL GOALS
AND OBJECTIVES, WE ALSO WANT TO
HAVE AN IMPLEMENTATION PLAN, HOW
ARE WE ACTUALLY GOING TO
ACCOMPLISH THESE THINGS,
INCLUDING HOW ARE WE GOING TO
ASSESS WHETHER WE'VE BEEN
SUCCESSFUL OR NOT, WHAT METRICS
ARE WE GOING TO USE TO JUDGE
WHETHER WE'VE BEEN SUCCESSFUL?
SO THE HOPE WOULD THEN BE TO
GATHER THAT FEEDBACK FROM THE
KEY STAKEHOLDERS THAT WILL THEN
GUIDE US WITH KIND OF FINISHING
THAT UP AND THEN HOPEFULLY WE'LL
VL OUR STRATEGIC PLAN FINISHED
IN MARCH 2025 AND START
IMPLEMENTING IT IN APRIL.
SO THAT'S A QUICK OVERVIEW OF
THE INTRAMURAL RESEARCH PROGRAM.
I THINK I HAVE TIME FOR A FEW
QUESTIONS, I'D BE HAPPY TO
ANSWER ANY QUESTIONS.
>> WE'LL HAVE DR. FORREST --
>> I'M CHRIS.
THANK YOU FOR THAT PRESENTATION
FROM PHILADELPHIA.
THE BIGGEST QUESTION I HAD,
MAYBE IT'S NOT EVEN
ANSWERERRABLE BECAUSE IT SOUNDS
LIKE YOU'RE WORKING ON IT, IS
HOW 15 INVESTIGATORS, DOING
SOMEWHAT DIVERSE RESEARCH, HOW
DO YOU AS THEIR LEADER EVALUATE
SUCCESS OF THE ENTIRE INTRAMURAL
PROGRAM?
AND THAT KIND OF RELATES TO KIND
OF A SECONDARY QUESTION WHICH
IS, THIS FUSION OF THE
COMPUTATIONAL BIOLOGICAL
INFORMATICS, YOU STILL HAVE THE
TWO OPPOSITE IN THE DIVISION,
THERE MAY BE SOME CONSTRAINTS
THAT YOU HAVE OR MAYBE SOME --
I'M CURIOUS HOW THAT'S GOING,
AND HOW YOU'RE SORT OF VIEWING
SUCCESS FOR THE OVERALL PROGRAM.
>> THOSE ARE BOTH REALLY GOOD
QUESTIONS.
IN TERMS OF THE FIRST QUESTION,
I THINK IT'S EASY FOR US TO
IDENTIFY SUCCESS AT THE
INDIVIDUAL INVESTIGATOR LEVEL
AND WE CERTAINLY HAVE OUR BOARD
OF SCIENTIFIC COUNSELORS THAT
HAVE THAT EXTERNAL EVALUATION OF
THAT AS WELL.
BUT I THINK JUST SIMPLY
SUMMARIZING AND DOING AN AVERAGE
OF THOSE RESULTS IS NOT REALLY
WHAT YOU'RE ASKING ABOUT AND
THAT IS, WHAT ARE THE
SYNERGISTIC KIND OF THINGS THAT
COULD COME OUT OF A PROGRAM LIKE
THIS THAT GO ABOVE AND BEYOND
THE SUCCESS OF INDIVIDUAL
INVESTIGATORS.
SO I THINK ONE OF THE THINGS
THAT I'M LOOKING FOR IS HOW
WE'RE JUDGED AT NIH.
I FEEL LIKE RIGHT NOW, WE DON'T
HAVE AS MUCH RECOGNITION ACROSS
NIH FOR WHAT WE DO THAN WHAT WE
DESERVE, BECAUSE I THINK THE
RESEARCH -- THE EXAMPLES OF
RESEARCH THAT YOU SAW HERE IS
JUST THE TIP OF THE ICEBERG.
I THINK WE HAVE OUTSTANDING
COMPUTATIONAL RESEARCH HERE.
AND EVERYBODY AT NIH IS
INTERESTED IN COMPUTATIONAL
BIOLOGY DATA SCIENCE --
EVERYBODY'S INTERESTED IN
ARTIFICIAL INTELLIGENCE.
AND SO WHAT I'M STARTING TO SEE
NOW IS THAT PEOPLE AT OTHER
INSTITUTE ARE REACHING OUT TO
US, THEY WANT TO KNOW WHAT'S
GOING ON, THEY WANT TO KNOW
WHERE THE OPPORTUNITIES ARE TO
COLLABORATE, AND TO ME, IT'S
THOSE KINDS OF THINGS THAT WILL
REFLECT THE SUCCESS OF THE
PROGRAM IF WE CAN EXPAND THOSE
KINDS OF OPPORTUNITIES, SO THOSE
ARE THE KINDS OF THINGS THAT I
THINK WE CAN USE TO JUDGE THE
SUCCESS OF THE PROGRAM.
AND THEN IN TERMS OF THESE TWO
BRANCHES, THERE'S A LOT OF
HISTORY THERE, AND, YOU KNOW, TO
SOME DEGREE, IF YOU LOOK AT THE
RESEARCH PROGRAMS, THEY ARE
QUITE DISTINCT.
THE HEALTH RESEARCH INFORMATICS
IS WORKING ON THINGS LIKE
CLINICAL DECISION SUPPORT
RESEARCH AND HOW DO YOU USE THE
CLINICAL INFORMATION TO DEVELOP
DIAGNOSTICS, PROGRESS NOS TICS,
THINGS LIKE THAT, WHEREAS ON THE
COMPUTATIONAL BIOLOGY SIDE, A
LOT OF IT IS VERY BASIC
RESEARCH.
SO I THINK IT'S GOING TO BE A
CHALLENGE FOR US TO FIGURE OUT
HOW TO BRING THESE THINGS
TOGETHER, BUT I THINK EVERYBODY
WANTS THE CLINICAL DATA TO START
GETTING INTEGRATED WITH THE
MOLECULAR DATA.
PAUBECAUSE WE'RE GENERATING THAT
KIND OF INFORMATION IN OUR
RESEARCH PROGRAMS, SO I THINK
IT'S A NATURAL KIND OF
PROGRESSION OF HOW WE HAVE TO
TAKE OUR RESEARCH TO FIGURE OUT
HOW TO DO THAT INTEGRATION.
SO I DO THINK THAT THAT IS
PROBABLY THE KIND OF RESEARCH
PROJECT WHERE WE'RE GOING TO
START BRINGING THESE TWO
BRANCHES TOGETHER.
IT'S CERTAINLY SOMETHING I'M
VERY INTERESTED IN PERSONALLY,
BUT I WANT TO ALSO ENCOURAGE
THAT WITHIN OUR PROGRAM AS WELL,
BUT IT'S GOING TO BE A
CHALLENGE.
>> SO I WAS WONDERING WHEN
YOU -- TELL US A LITTLE BIT
ABOUT THE PROCESS, COMMITTEE AND
HAVE A FIXED RUBRIC AND WHAT
OTHER MATERIAL -- WAIT, FOR
EXAMPLE, RESEARCH VERSUS
SERVICE -- [INAUDIBLE]
INCORPORATED INTO THE --
>> SO WE DO HAVE A RUBRIC THAT
IS DEFINED IN ADVANCE, AND PART
OF IT IS FOCUSED ON THE RESEARCH
OBJECTIVES.
LIKE IN THIS CASE, WE HAD A
TARGETED AREA THAT WE WANTED TO
RECRUIT TO, AND SO PART OF THAT
RUBRIC IS ARE THEY DOING
BIOSTATISTICAL RESEARCH, ET
CETERA.
BUT THEN THE OTHER PART OF IT
IS, WHAT ARE THEIR EXPERIENCE IN
TRAINING AND EDUCATION, WHAT
KIND OF SERVICE ACTIVITY HAVE
THEY BEEN INVOLVED IN.
THERE IS A DEIA STATEMENT THAT
EACH OF OUR CANDIDATES PROVIDES.
WE WANT TO SEE A COMMITMENT TO
THE DEI OBJECTIVES IN THEIR
STATEMENT AND HOPEFULLY IN THEIR
PAST EXPERIENCE.
SO WE DO HAVE THAT RUBRIC AND
THE SEARCH COMMITTEE USES THAT
IN THEIR EVALUATION AS THEY'RE
GOING THROUGH ALL THE
APPLICATIONS.
AND I THINK IT'S IMPORTANT TO
ESTABLISH THAT UP FRONT AND NOT
DO IT AD HOC AS YOU'RE LOOKING
AT THE APPLICATIONS.
BUT THAT IS PART OF THE PROCESS.
>> SO THANK YOU SO MUCH FOR THAT
PRESENTATION.
I REMEMBER TALKING TO YOU ON
YOUR FIRST DAY LAST YEAR.
I THOUGHT, OH, BOY.
YOU REALLY HAVE A TALL ORDER
HERE, AND RELATED TO CHRIS'
QUESTION IS THE FACT THAT -- THE
COMPUTATIONAL ISSUE, THE TWO
PILLARS THAT YOU HAVE UNDER THIS
UMBRELLA, I DIDN'T SEE THAT
RELATED IN ONE OF YOUR
OBJECTIVES.
SOMEHOW TO ME, THAT NEEDS TO
BE -- YOU HAVE IT BURIED IN
THERE, AND I JUST -- I DON'T
THINK THAT -- YOU'RE NOT GOING
TO GET TO YOUR GOAL IF IT'S NOT
THERE.
>> THAT'S AN EXCELLENT
RECOMMENDATION.
AND I ABSOLUTELY NEED TO HAVE AN
OBJECTIVE ALONG THOSE LINES, SO
THANK YOU BOTH.
>> SURE.
AND SECONDLY IS THAT -- I KNOW
THAT YOU'RE STILL WORKING ON
THIS, BUT SO MUCH OF THE SUCCESS
OF THIS IS SO IMPORTANT FOR NLM,
RIGHT, AND HOW YOU'RE GOING TO
EVALUATE IT IS CRITICAL, RIGHT?
AS YOU WELL KNOW.
SO I WOULD LIKE TO SEE HOPEFULLY
ANOTHER PRESENTATION NEXT YEAR
FOR INFORMATION ON YOUR WHOLE
STRATEGIC PLAN, BECAUSE WE'RE
HERE TO SUPPORT YOU, AND SO
ANYWAY.
>> I AM 100% IN FAVOR OF MAKING
SURE THAT WE HAVE AN
IMPLEMENTATION PLAN AND METRICS
TO EVALUATE THE OUTCOME.
YOU KNOW, WE'VE BEEN LOOKING AT
A LOT OF STRATEGIC PLANS, YOU
KNOW, FROM DIFFERENT INSTITUTES
AT NIH AND STUFF LIKE THAT, AND
YOU'D BE SURPRISED HOW FEW OF
THEM ACTUALLY HAVE
IMPLEMENTATION PLANS AND
PERFORMANCE METRICS.
>> OH, I'M NOT SURPRISED.
BUT I'M NOT JUST TALKING ABOUT
OUTCOMES.
I REALLY WOULD LIKE TO SEE -- SO
YOU'VE GOT TO GET THOSE TOGETHER
CORRECTLY.
>> I THINK IMPACT IS THE MOST
IMPORTANT OUTCOME.
I AGREE WITH YOU.
>> SO I'D LIKE TO ASK YOU THE
SAME QUESTION, FOR TWO REASONS.
ONE, YOU YOURSELF TOUCHED ON
SORT OF NOTING THAT OTHER
INSTITUTES DON'T REALLY KNOW
WHAT YOU DO, AND SO MY QUESTION
WAS ABOUT DOING COLLABORATIVE
RESEARCH WITH CLINICAL CENTER
OTHER OTHERS, SO FOR INSTANCE,
YOUR NATURAL LANGUAGE PROCESSING
CAPABILITIES ARE THINGS THAT I
KNOW RESEARCHERS AND THE OTHER
INSTITUTES WOULD LOVE TO BE ABLE
TO DO WITH THE DATA THEY'RE
PULLING FROM ELECTRONIC HEALTH
RECORDS.
SECOND, THE JOB DESCRIPTION FOR
THE DIRECTOR OF THE NLM ACTUALLY
TALKED SPECIFICALLY ABOUT A
DIRECTOR WHO WOULD WORK WITH THE
OTHER INSTITUTES TO BRING THEM
TOGETHER.
SO I WONDER IF YOU HAVE ANYTHING
YOU COULD ADD TO --
>> WELL, YOU KNOW, I APPRECIATED
YOUR COMMENT TO KIN WAH AND I
FIGURED YOU WOULD ASK THAT TO ME
TOO.
YOU KNOW, I THINK THAT THERE ARE
TWO ASPECTS OF THAT.
ONE IS OUR ABILITY TO
COLLABORATE WITH CLINICAL
INVESTIGATORS AT OTHER
INSTITUTES, AND I THINK WE'RE
SEEING A LOT OF THAT HAPPENING.
LIKE, YOU KNOW, I GAVE TWO
EXAMPLES, ONE WAS ON THE
ECHOCARDIOGRAM WHICH IS IN
COLLABORATION WITH NHLBI
INVESTIGATORS.
AND THEN THE OTHER ONE, WHAT
THOSE COLLABORATIONS ARE.
THE RETINAL STUFF.
>> SO THAT WAS WITHIN NOT JUST
YOUR OWN --
>> SO THAT'S WITHIN NEI AND SOME
OF THE INVESTIGATORS THERE.
BUT TO BE HONEST WITH YOU, THOSE
INVESTIGATORS ARE NOT USING DATA
FROM THE CLINICAL CENTER.
SO I DO THINK THAT WE'RE DOING A
GOOD JOB OF COLLABORATING WITH
CLINICAL INVESTIGATORS IN OTHER
ICs, BUT I DO FEEL LIKE WE'RE
NOT TAKING ADVANTAGE OF THE
RESOURCES THAT THE CLINICAL
CENTER PROVIDES.
SO I THINK YOUR POINT IS WELL
TAKEN AND I DON'T HAVE A GOOD
ANSWER TO YOU BECAUSE I DON'T
THINK WE'VE DONE A GOOD JOB OF
THAT YET.
I KNOW PART -- WHEN WE'VE HAD
THAT DISCUSSION, PART OF THE
RESPONSES I'VE GOTTEN BACK IS
THAT, WELL, THE CLINICAL CENTER
IS FOCUSED ON RARE DISEASES, AND
SO IF YOU'RE TRYING TO APPLY
A.I. METHODS WHERE YOU NEED A
LOT OF DATA, IT MAY NOT BE THE
BEST SOURCE OF THAT KIND OF
INFORMATION FOR SOME OF THOSE
COMPUTATIONAL APPLICATIONS BUT I
STILL FEEL THERE'S A MISSED
OPPORTUNITY THAT I FEEL WE NEED
TO TAKE MORE ADVANTAGE.
>> THEY ARE A HOSPITAL, SO DOING
RESEARCH ON HOW TO BE A BETTER
HOSPITAL FROM AN INFORMATICS
STANDPOINT I THINK IS WELL
WITHIN YOUR WHEELHOUSE.
>> RIGHT, YEAH, I THINK THERE'S
LOTS OF OPPORTUNITIES HERE THAT
WE'VE NOT TAKEN ADVANTAGE OF
YET.
>> SO QUESTION IN TWO PARTS
REGARDING THE RARE CASES.
FOR ANY A.I. PROBLEM, NO ONE
CARES ABOUT THE -- IT'S ALL
ABOUT CAREER CASES.
>> I WOULD COUNTER ANYONE THAT
SAID --
>> WELL -- SO QUESTION IN TWO
PARTS, ONE IS THE INTERNSHIPS
AND OTHER TRAINING PROGRAMS, DO
YOU COU DO ANY LONGITUDAL TRACIF
THOSE?
>> WE DO.
SO WE TRACK WHERE THESE
INDIVIDUALS END UP GOING.
IT CAN BE CHALLENGING SOMETIMES
TO KIND OF MAINTAIN THOSE
COMMUNICATIONS BECAUSE THERE'S
NO -- WITHOUT KIND OF HEARING
FROM THEM ABOUT WHERE THEY END
UP, IT'S HARD TO KIND OF TRACE
THEM.
BUT WE HAVE A TRAINING OFFICE
THAT IS RESPONSIBLE FOR MANAGING
OUR TRAINING ACTIVITIES AND PART
OF THEIR OBJECTIVE IS TO
MAINTAIN AND TRACK WHAT HAPPENS
TO OUR TRAINEES.
I THINK IT MIGHT BE A GOOD IDEA
FOR US IN THE FUTURE TO MAYBE
INCLUDE THAT IN THE PRESENTATION
SO THAT WE ACTUALLY CAN SEE HOW
GOOD OF A JOB HAVE WE DONE.
>> THE MILITARY HAS THIS PROBLEM
[INAUDIBLE] AND -- THE OTHER
PART THAT YOU MENTIONED WAS WHO
WOULD BE A PERSON TO TALK TO
ABOUT THAT?
THE MILITARY DEPARTMENT --
CHALLENGED BY MY OWN SG ON THIS,
HOW DO WE PREDICT WHO'S GOING TO
GO WHERE, AND THE -- PART OF
THAT IS WE HAVE TO KNOW WHERE IT
CAME FROM.
>> YEAH, THAT WOULD BE AN
INTERESTING COMPUTATIONAL
PROBLEM.
>> SEE IF WE COULD PREDICT WHO'S
GOING TO END UP BEING
SUCCESSFUL.
>> I WANT TO APPLAUD YOU ALL
FROM DOING FUNDING FROM OTHER
INSTITUTES AND HELPING TO EXPAND
THE ABILITY TO DO NEW RESEARCH.
IN THAT DAY ESSENTIALLY -- ON
THE HIDDEN FLAWS WITH A.I.,
THAT'S A UNIVERSITY OUTLOOK, THE
ABILITY FOR A.I. BASED ON --
ACCURACY, THEIR SOURCING IS A
REAL ISSUE FOR ALL OF US -- AT
AN OPERATIONAL LEVEL.
SO WHEN YOU APPLY TO DO RESEARCH
WITH LIKE V.A. OR DOD BECAUSE A
LOT OF WORK WE DO HERE HAS
APPLICATIONS ACROSS THE ENTIRE
GOVERNMENT, AND I SEE THAT IN
OTHER SETS OF -- POPPED INTO MY
HEAD WHEN YOU WERE TALKING ABOUT
THE RECOGNITION, I CAN THINK OF
NO BETTER WAY TO ELEVATE YOUR
RECOGNITION ON THE CAMPUS BY
HAVING VA, DOD OR NA IS OR
SOMEBODY ELSE FUNDING A GRANT
HERE WITH YOU.
AND I KNOW THEY DO IT, I KNOW
FIRSTHAND -- AND I'M PRETTY SURE
DOD -- BUT WHATEVER YOU'RE
WORKING,
>> SO OUR RESEARCH IS VERY MUCH
DRIVEN BY INDIVIDUAL
INVESTIGATORS, SO I THINK THAT
TO A LARGE EXTENT, THAT DEPENDS
ON THE EXPERIENCE THAT OUR
INVESTIGATORS HAVE HAD IN
WORKING WITH THE VA OR
DEPARTMDEPARTMENT OF DEFENSE OR
OPPORTUNITIES THAT THEY HAVE
IDENTIFIED DURING THOSE TYPE OF
COLLABORATIONS.
BUT I THINK IT'S A GREAT POINT,
WE'RE ALWAYS LOOKING FOR GOOD
COLLABORATORS, WE'RE ALWAYS
LOOKING FOR DATA, AND SO TO THE
EXTENT THAT IF WE CAN ESTABLISH
PARTNERSHIPS TO BE ABLE TO DO
THAT, I THINK THAT WOULD BE --
SO I'LL GO BACK TO MY
INVESTIGATORS AND SAY HEY --
KINDS OF PARTNERSHIPS COULD BE
HUGE OPPORTUNITIES.
AND LIKE I SAID, IT'S NICE THAT
WE GET CORE FUNDING FOR OUR
RESEARCH, BUT IT DOESN'T HURT TO
HAVE THE OPPORTUNITY TO EXPAND
AS WELL.
>> AND I DON'T KNOW IF YOU WERE
INHERE EARLIER, RA WE HAVE A VEY
ROBUST ELECTRONIC HEALTH RECORD,
AND WE HAVE A VERY LARGE
POPULATION, SO, YOU KNOW, IF
THERE IS NOT A -- AND YOUR FOLKS
WERE INTERESTED IN DOING SOME OF
THOSE TYPES OF THINGS, I THINK
THAT WOULD BE AN OPPORTUNITY TO
HELP FACILITATE THOSE TYPES OF
DISCUSSIONS THAT WOULD GIVE YOU
THAT IF IT IS, THEY DON'T WANT
TO GET INTO THE RARE/NEGLECTED
TYPE OF DISEASE BUT THEY WANT TO
GET INTO THE ROBUST DATASETS, WE
HAVE A FAIRLY ROBUST DATASET.
>> SO I'M GOING TO ASK KIN WAH
TO ASK CCOI, BRING IN THE VA
DATA, AND THEN WE COULD START
USING IT.
>> INTERESTING POINT.
THE VA MEMBERSHIP SYSTEMS IS
UNRELATED TO --
>> OH, SORRY, YES.
>> BUT WE HAVE A DOD MEDICAL
SYSTEM -- MUCH MORE
REPRESENTATIVE OF THE COMMUNITY.
>> YEAH, THAT WOULD BE VERY
INTERESTING TO BE ABLE TO
ACCESS.
SO MY DEPUTY DIRECTOR, DAVID
LANDS MAN, HE JUST KIND OF
JOINED IN THAT POSITION A FEW
MONTHS AGO, SO DAVID?
>> -- DISPOINT -- INVESTIGATORS
[INAUDIBLE] THE OTHER POINT --
[INAUDIBLE] WHEN I WAS IN
COLLEGE -- ARE [INAUDIBLE]
>> BUT MY UNIVERSITY, I'VE NEVER
SENT THEM A LETTER IN 30 YEARS,
I GUARANTEE THEY'D FIND ME.
>> I HAD A QUESTION ABOUT
WHETHER YOU SEE TRANSLATIONAL
BIOINFORMATICS RESEARCH AS A WAY
OF POTENTIALLY BRIDGING THE
COMPUTATIONAL AND HEALTH
INFORMATICS AREAS OR --
>> YEAH, I THINK THOSE ARE THE
KINDS OF RESEARCH PROGRAMS THAT
WE PROBABLY HAVE THAT ARE
BRIDGING THOSE TWO AREAS.
BUT I THINK AT LEAST FROM MY
PERSPECTIVE HISTORICALLY, WHAT
WWHEN WE DID TRANSLATIONAL
RESEARCH AND I DID A LOT OF
THAT, WE NEVER REALLY THOUGHT
ABOUT TRANSLATING IT INTO THE
CLINIC.
AND I THINK THAT'S WHERE THE
MISSING LINK IS RIGHT NOW.
BUT NOW WITH ALL THE -- OF A.I.,
EVERYBODY IS LOOKING TO US TO
TRANSLATE THESE INTO CLINICAL
SYSTEM, SUPPORT SYSTEMS AND
THINGS LIKE THAT.
SO THE TIME IS RIPE, I THINK,
FOR THAT TRANSLATION, AND IT
SOMETHING THAT WE SHOULD BE
LEADING HERE AT NLM.
THIS IS EXACTLY WHAT WE WERE
DESIGNED TO DO.
SO IT IT'S REALLY IMPORTANT ANDI
WILL DEFINITELY ADD THIS AS AN
IMPORTANT OBJECTIVE INTO MY
STRATEGIC PLAN.
>> -- ABOUT TRANSLATION.
I NOTICE THAT IT'S NOT --
TRANSLATION IN YOUR SLIDES -- SO
IS THAT KIND OF AN INTENTIONAL
SEPARATION SO THAT -- TO NOT
BE -- ANOTHER PART OF --
>> YEAH, I THINK HISTORICALLY,
THAT WAS KIND OF THE RATIONALE
FOR WHY WE HAD KIND OF A BARRIER
BETWEEN RESEARCH AND DEVELOP M.
BUT YOU KNOW, WE'VE HAD A LOT OF
DISCUSSIONS ABOUT YOU -- I THINK
IT MAKES SENSE TO LOWER THAT
BARRIER.
MAYBE THERE STILL SHOULD BE A
SEPARATION OF BASE BEING
RESEARCH AND APPLIED RESEARCH,
BUT I THINK THERE ARE MISSED
OPPORTUNITIES BY NOT THINKING
ABOUT HOW TO TRANSLATE THESE
DISCOVERIES IN BASIC SCIENCE,
AND I THINK KIN WAH AND I ARE ON
THE SAME PAGE ABOUT HOW
IMPORTANT THAT IS, SO WE'RE
LOOKING FOR OPPORTUNITIES TO DO
THAT.
BUT YEAH, HE MEAN, IT'S MORE FOR
HIS FHISTORICAL REASONS.
>> OKAY.
THANK YOU SO MUCH.
>> THANK YOU, EVERYONE.