>> GOOD TO SEE EVERYONE.
IT'S MY PLEASURE TO CALL TO
ORDER THE MAY 14, 2024 MEETING
OF THE NATIONAL LIBRARY OF
MEDICINE BOARD OF REGENTS.
AS A REMINDER, THIS MEETING IS
BEING VIDEOCAST TO THE PUBLIC.
WE'LL BEGIN OUR MEETING WITH
WARM WELCOMES TO OUR NEW EX
OFFICIO DESIGNEE MEMBERS AND NEW
2023 AND 2024 APPOINTED MEMBERS.
SERVING AS NEW EX OFFICIO
DESIGNEE MEMBERS ARE MAJOR
GENERAL JOHN BARTRUM,
MOBILIZATION ASSISTANT, THE
SURGEON GENERAL OF THE U.S. AIR
FORCE AND SPACE FORCE WHO IS
REPLACING COLONEL THOMAS.
AND DR. HOLLY MIRE, ASSOCIATE
PROFESSOR OF MEDICINE AND HEALTH
PROFESSIONS EDUCATION AT THE
UNIFORMED SERVICES UNIVERSITY OF
THE HEALTH SCIENCES WHO IS
REPLACING DR. LAUREN MAGGIO.
THE NEW 2023 AND 2024 APPOINTED
MEMBERS WHO ARE TODAY ATTENDING
AS CONSULTANTS FOR THE MAY
MEETING ARE DR. ANNE, PROFESSOR
IN THE DEPARTMENT OF PHYSIOLOGY
AND MEDICINE AT THE MEDICAL
COLLEGE OF WISCONSIN, DR. CARMEN
PORTILLO, FORMERLY EXECUTIVE
DIRECT -- DEPUTY DEAN AND
PROFESSOR IN THE DEPARTMENT OF
NURSING AT YALE UNIVERSITIY
SCHOOL OF NURSING, WHO IS
RETIRED.
AND DR. CHRISTOPHER, PROFESSOR
OF PEDIATRICS AT THE CHILDREN'S
HOSPITAL OF PHILADELPHIA AT THE
UNIVERSITY OF PHILADELPHIA
SCHOOL OF MEDICINE.
DR. WENJIAN LIU ASSISTANT
PROFESSOR OF THE UNIVERSITY OF
WISCONSIN-MADISON SCHOOL OF
NURSING.
DR. NIELSEN, PROFESSOR IN THE
DEPARTMENT OF INTEGRATIVE
BIOLOGY AND STATISTICS AS U.C.
BERKELEY AND Mr. CHRISTOPHER
SHAVER, THE UNIVERSITY LIBRARIAN
AT THE UCSF LIBRARY AT THE
UNIVERSITY OF CALLING FOREIGNIA,
SAN FRANCISCO.
I'D LIKE TO -- CALIFORNIA --
THANK ITS MEMBERS FOR THEIR
SERVICE TO THE NATIONAL LIBRARY
OF MEDICINE BOARD OF REGENTS.
OUR NEXT AGENDA ITEM IS A REPORT
OF THE OFFICE OF THE SURGEON
GERMAN.
I'M DELIGHTED TO WELCOME
Ms. CAITLIN RUPPEL, AND GENE
GARCIA DAVIS.
Ms. RUPPEL IS A PROGRAM
ASSOCIATE IN SCIENCE AND POLICY
AND Ms. GENE GARCIA DAVIS IS
ASSOCIATE DIRECTOR FOR SCIENCE
AND POLICY AT THE U.S.
DEPARTMENT OF HEALTH AND HUMAN
SERVICES, OFFICE OF THE U.S.
SURGEON GENERAL.
WELCOME VERY MUCH.
>> THANK YOU VERY MUCH,
DR. HOLMES AND THANK YOU VERY
MUCH TO EVERYONE FOR HAVING US
AGAIN FOR THIS HONOR AND KIND
INTRODUCTION.
TO DR. SHERRY AND ALL THE BOARD
MEMBERS JOINING TODAY, I'M
DELIGHTED TO INCLUDE ONE OF OUR
TEAM LEADERS AS WELL, CAITLIN
RUPPEL, WHO WILL BE JOINING AND
JUMPING IN BRIEFLY RIGHT AFTER I
DO THE OPENING SLIDES.
SO, WONDERFUL AGAIN TO
RECONNECT.
IT'S NICE TO SEE YOU ALL AND
GIVEN OUR WORK TOGETHER THROUGH
THIS TIME, FOUR YEARS INTO THE
PANDEMIC, WE ALSO WANTED TO WISH
YOU A WONDERFUL AND PEACEFUL
MENTAL HEALTH AWARENESS AND
ACTION MONTH, AS WELL AS ANYONE
WHO IS COMING OFF OF A HAPPY
MODELER DAY, CAREGIVERS OUT
THERE ON THE LINE.
-- MOTHER'S DAY.
KNOW WE ARE TWO VOICES AMONG
MANY ON OUR TEAM SO WE WILL BE
SHARING MORE ABOUT OUR WORK AND
UPDATES AND INVITING TO SHARE
QUESTIONS AT THE END.
SO I JUST WANTED TO SHARE SOME
OF THE TOPICS THAT ARE A
CONTINUATION OF WHAT WE SHARED
LAST TIME WHEN I BROUGHT MY
OTHER COLLEAGUE.
SO WE WILL GIVE BRIEF UPDATES ON
WHERE WE ARE IN TERMS OF THE
WORKPLACE AND WORKFORCE
WELL-BEING IN WORK AS WELL AS
WHERE WE ARE WITH SOCIAL
CONNECTION, BUILDING ON WHAT
AETNA SHARED IN THE PREVIOUS
BRIEFING, AND THEN CAITLIN WILL
TAKE US THROUGH THE WORK ON
YOUTH MENTAL HEALTH INCLUDING
THE OVERLAP AND SOCIAL
CONNECTION AND WE'LL CLOSE WITH
Q&A AS TIME PER METS.
AS A REMINDER OF OUR MISSION
TOGETHER, IN PARTICULAR AS WE
CLOSE OUT YOUR FOUR OF THIS
ADMINISTRATION AND WHAT WE ARE
DOING TO HELP SUPPORT PARTNERS,
SUSTAIN THIS WORK AND AS WE
TRANSITION INTO THE NEXT YEAR
AHEAD.
SO JUST A REMINDER OF OUR
MISSION HERE AND WHAT WE ARE
AIMING TO DO.
HUGE GRATITUDE AND APPRECIATION
FOR THIS WORK WE DO TOGETHER AND
I AM HIGHLIGHTING OUR DEPUTY
SURGEON GENERAL GENERAL ON THE
LEFT AS WELL AS LIEUTENANT
COMMANDER DAILY AND
LIEUTENANTANT'S TEAM WHO WE
CELEBRATED AS NURSES AS PART OF
THE NURSES AND PUBLIC SERVICE
RECOGNITION WEEK.
SO WE WANTED TO ALSO SHARE BRIEF
UPDATES.
SINCE THE 2022 ADVISORY -- WE
WORKED ON ADDRESSING HEALTH
WORKER BURNOUT AND WELL-BEING AS
MANY OF YOU HAVE DONE DECADES OF
RESEARCH ON, WE HAVE BEEN
FOLLOWING UP ON THAT.
WE HAD A ROUNDTABLE WITH HEALTH
CARE WORKERS AND HEALTH CARE
LEADERSHIP WHILE ON THE ROAD IN
IOWA AND NEBRASKA.
AND HE CONTINUES TO SERVE AS
CO-CHAIR ON THE NATIONAL ACADEMY
OF MEDICINE ACTION COLLABORATIVE
FOR HEALTH WORKFORCE RESILIENCE
AND WELL-BEING.
WE CELEBRATED IN MARCH, SPEAKING
OF NURSES AND MANY OTHER HEALTH
CARE WORKERS, THE NATION'S
FIRST-EVER HEALTH WORKFORCE
WELL-BEING DAY ON MARCH 18,
WHICH IS SIGNIFICANT AND
IMPORTANT, GIVEN THE PASSAGE OF
THE HEALTH CARE PROVIDER
PROTECTION ACT ON THAT DATE JUST
A FEW YEARS AGO.
AND SINCE THIS TIME, SINCE 2022
AND IN PARTICULAR IN THE LAST
3-6 MONTHS, WE HAVE BEEN WORKING
CLOSELY WITH THE IMPACT CAMPAIGN
THAT WORKS WITH HEALTH SYSTEMS
ACROSS HEALTH CARE SETTINGS,
RESOURCES AND TOOLS, WAYS TO
SUPPORT LEADERS WHO ARE ALSO
FACING HEALTH CARE, HEALTH
WORKER BURNOUT AND MENTAL HEALTH
CHALLENGES THROUGH THIS TIME.
AND WE HAD A MORE RECENT ONE TO
SHARE, COMMITTEE MEETING WITH
THE STEERING COMMITTEE THAT
BROUGHT TOGETHER A NUMBER OF
DIFFERENT LEADERS TOGETHER TO
TALK ABOUT NOT ONLY WHAT AI
LOOKS LIKE WITH HEALTH CARE
SYSTEM TODAY BUT WHAT IT LOOKS
LIKE IN PARTICULAR WITH ENSURING
IT DOESN'T ADD MORE BURDEN TO
HEALTH WORKERS.
ACTUALLY MORE SUPPORTIVE.
HOW DO WE HARNESS ARTIFICIAL AND
AUGMENTED INTELLIGENCE WHILE
SHARING THE WELL-BEING OF OUR
WORKFORCE.
AND THEN FINALLY, I WANTED TO
NOTE HERE, WORKPLACE WELL-BEING
CONTINUES TO BE PART OF OUR
ONGOING BRIEFINGS AND
DISSEMINATION WITH PARTNERS
WHERE WE ARE QUITE BUSY IN THE
LAST FEW MONTHS TO WRAP UP SOME
OF THIS WORK, INCLUDING, WE DID
HAVE A WORKFORCE WELL-BEING
SEMINAR WITH NIH, MORE BROADLY,
AND THEN ALSO WITH OPM IN THE
LAST TWO WEEKS.
AND WE MELT AT A STAFF LEVEL AND
INVOLVED WITH THE NATIONAL
ACADEMY OF MEDICINE IN NEW YORK
AS WELL AS THROUGH THE WORLD
ECONOMIC FORUM AND ENGAGEMENT
WITH UPENN AND THEN WITH THE
ADMINISTRATION FOR COMMUNITY
LIVING NEXT TWO WEEKS.
SO WE ARE ALSO, TRANSITIONING A
LOT OF THIS WORK IN ORDER TO
FOCUS ON SOME OF OUR REMAINING
STRATEGIC PRIORITIES IN OUR
OFFICE.
THE LAST PIECE I WILL MENTION
HERE WE DISCUSSED BRIEFLY LAST
TIME TOO, IS ON THE FORTHCOMING
SURGEON GENERAL GENERAL'S
REPORT, SMOKING AND HEALTH AND A
PARTICULAR ON ENDING AND
ELIMINATING DISPARITIES SINCE
THE 1998 REPORT FIRST CAME OUT.
SO IT'S BEEN 26 YEARS.
WE ARE HAPPY TO SAY THAT
DOCUMENT WAS FINALLY IN THE
HANDS OF THE SECRETARY AND
PEER-REVIEWED AFTER 5-6 YEARS
NOW OF ONGOING WRITING AND
DEVELOPMENT AND WHAT I CAN SAY
TOO, IS THERE WILL BE TO OUR
KNOW, A FUTURE SURGEON GENERAL'S
REPORT THAT WILL FOCUS ON
BEHAVIORAL HEALTH INDICATIONS.
BUT WAITING ON THIS TO ALSO COME
THROUGH HOPEFULLY IN THIS NEXT
YEAR.
AND THEN FINALLY, AS I
MENTIONED, YOU MET AETNA AND OUR
TEAM WHO IS WORKING ON THE
SOCIAL CONNECTION TOGETHER WITH
CAITLIN.
AND SINCE THAT ADVISORY WAS
LAUNCHED THIS TIME LAST YEAR, SO
CELEBRATING ONE-YEAR
ANNIVERSARY.
SHE MENTIONED SOME EXISTING
MEASURES WITH DIFFERENT SURVEYS
WHERE SHE WAS WORKING WITH OTHER
AGENCIES IN PARTICULAR THE NCHS
AND OTHERS IN CENSUS AND JUST
WANTED TO SHARE SOME OF THE
MILESTONES THERE IN TERMS OF
ADDITIONS, QUESTIONS ADDED TO
THE SURVEY.
SO, IN ADDITION TO ADDING SOME
OF THE QUESTIONS WITHIN THESE
AGENCIES, THEY HAVE ALSO WANTED
TO NOTE THEY COMPLETED A SECTION
CYCLE OF DATA IN PARTICULAR WITH
THE CENSUS POST SURVEY BY THE
END OF MARCH AND OUR
UNDERSTANDING IS THAT THEY ARE
LOOKING AT THE DATA TO SEE WHAT
THE TRENDS ARE.
IN ADDITION, QUESTION ON
LONELINESS WAS ALSO ADDED INTO
THE LATEST NHIS AND AS WELL AS
QUESTIONS ON SOCIAL ISOLATION
WERE ADDED FROM THE SOCIAL
NETWORK INDEX INTO THE AIMS AND
WE WANTED TO ALSO HIGHLIGHT
THERE WAS A RECENT MARCH NMWR
FROM THE CDC.
AND THIS STATE MODULE, WHICH IS
INCREASINGLY UNDER USE AND WAS
ADDED TO THE LITERATURE BASE
HERE IN ORDER TO INFORM
DIFFERENT POLICIES AND PROGRAMS
AND INTERVENTIONS THAT ARE
NEEDED, IN ADDITION TO
INTERVENTIONS TO BE EVALUATED.
AND THEN LAST TWO THINGS I'LL
MENTION IS WE ARE CONTINUING TO
MONITOR AND LOOK AT WHAT
OUTCOMES AND IMPACTS LOOK LIKE
WHILE ON THE ROAD AND ALSO
ENGAGING WITH PARTNERS AND WAN
WANTED TO SHARE ONE INTERESTING
CHANGE, PROGRESS, IN SAN MATTEO
COUNTY, CALIFORNIA, THE FIRST
COUNTY IN THE U.S. TO RECOGNIZE
LONELINESS AS A PUBLIC HEALTH
EMERGENCY, WHICH HAS DIFFERENT
IMPLICATIONS FOR FUNDING, FOR
PROGRAMMING, FOR PRACTICE.
AND THEN THE LAST THING
DR. MURTHY WAS RECENTLY INVOLVED
WITH REPORTING A PODCAST WITH
THE V.A. ON THIS TOPIC, WHICH
WILL BE APPLIED AS PART OF THE
MEDICAL SCHOOL TRAINING PROGRAM
AND PILOT WITH STUDENTS AND
TRAINEES.
SO WE CAN SHARE THAT AS THAT
WILL BE COMING OUT WITHIN THE
NEXT MONTH AS WELL.
SO WE ARE CONTINUING TO HEAR
MORE AND WE INVITE YOU TO HEAR
THE CHANGE ON THIS TOPIC AS WELL
WITHIN YOUR HEALTH SYSTEM AND
LOCAL AREA AND I'LL SHARE THESE
ADDITIONAL RESOURCES, INCLUDING
NWR AND THIS RECENT ABSTRACT.
NOW I'LL TURN IT OVER TO
CAITLIN.
>> THANK YOU VERY MUCH, JEAN,
AND GOOD MORNING TO ALL.
IT'S LOVELY TO BE HERE WITH YOU
TODAY.
AS JEAN MENTIONED, WE ARE ONE
YEAR OUT FROM OUR SOCIAL
CONNECTION ADVISORY AND WE ARE
ACTUALLY THREE YEARS THIS SPRING
OUT FROM THE PUBLICATION OF THE
SURGEON GENERAL'S ADVISORY
PROTECTING YOUTH MENTAL HEALTH.
AND THE OFFICE OF THE SURGEON
GENERAL CONTINUES TO PRIORITIZE
THIS ISSUE.
WE RECOGNIZE THAT YOUTH MENTAL
HEALTH CONTINUES TO BE PARAMOUNT
TO THE HEALTH AND SAFETY OF OUR
NATION.
AND IN 2022, 1-5 ADOLESCENTS AGE
12-17 YEARS WERE 4.8 MILLION
YOUTH EXPERIENCED A MAJOR
DEPRESSIVE EPISODE.
THIS CONTINUES TO BE A CORE
PRIORITY OF OUR OFFICE AND ONE
WE ARE MONITORING CLOSELY IN OUR
DAY-TO-DAY WORKINGS, AND SOME OF
HOW THAT LOOKS IS THAT WE FOCUS
ON TRACKING FEDERAL, STATE,
TRIBAL AND LOCAL-LEVEL
INVESTMENTS IN SCHOOL AND
COMMUNITY-BASED PROGRAMS TO
AMPLIFY EVIDENCE-BASED PROGRAMS.
AND A KEY FOCUS OF OUR RECENT
WORK HAS BEEN ON SOCIAL AND
EMOTIONAL LEARNING.
NEXT SLIDE, PLEASE.
SO, A KEY REASON FOR OUR FOCUS
ON SOCIAL AND EMOTIONAL LEARNING
IS THAT IT FITS AT THE OVERLAP
OF TWO OF OUR CORE PRIORITIES,
YOUTH MENTAL HEALTH AND SOCIAL
CONNECTION.
SO FOR THOSE WHO MAY BE LESS
FAMILIAR WITH SOCIAL AND
EMOTIONAL LEARNING, THE
COLLABORATIVE FOR ACADEMIC
SOCIAL AND EMOTIONAL LEARNING
COUNCIL IS A DRIVER OF RESEARCH
PRACTICE AND POLICY IN THE U.S.
AND GLOBALLY AND THEY DEFINE
SOCIAL AND EMOTIONAL LEARNING AS
THE PROCESS THROUGH WHICH ALL
PEOPLE AND ADULTS ACQUIRE AND
APPLY THE KNOWLEDGE, SKILLS AND
ATTITUDES TO DEVELOP HEALTHY
IDENTITIES, MANAGE EMOTIONS AND
ACHIEVE PERSONAL AND COLLECTIVE
GOALS, FEEL AND SHOW EMPATHY FOR
OTHERS, AND ESTABLISH AND
MAINTAIN SUPPORTIVE
RELATIONSHIPS AND MAKE
RESPONSIBLE AND CARING
DECISIONS.
AND THERE IS A VERY
WELL-ESTABLISHED LITERATURE THAT
DEMONSTRATES SOCIAL AND
EMOTIONAL LEARNING AS AN
EFFECTIVE STRATEGY TO ADDRESS
BOTH YOUTH MENTAL HEALTH AND
SOCIAL CONNECTION WHEN
IMPLEMENTED IN THE PRE-K-12
EDUCATION SETTINGS.
AND SO, NEXT SLIDE, PLEASE.
OUR OFFICE IS TRACKING THE
INVESTMENTS FOR SOCIAL AND
EMOTIONAL PROGRAMMING THROUGH
THE AMERICAN RESCUE PLAN ACT AND
THE BIPARTISAN SAFER COMMUNITIES
ACT.
THE ONE BILLION INVESTED THROUGH
LOCAL AND STATE EDUCATION
AGENCIES THROUGH THE STRONGER
CONNECTIONS GRANT PROGRAM TO
SUPPORT THE IMPLEMENTATION OF
SOCIAL AND EMOTIONAL LEARNING
PROGRAMS AND MENTAL HEALTH
SERVICES AND SUPPORTS IN K-12
EDUCATION SET ACCIDENT.
WE ALSO CONTINUE TO MONITOR HOW
THESE ARE EVOLVING AT THE LOCAL
AND STATE LEVELS ACROSS THE
COUNTRY AND WORK WITH EXTERNAL
PARTNERS AND U.S. GOVERNMENT
PARTNERS SUCH AS THE CDC
DIVISION FOR ADOLESCENT AND
SCHOOL HEALTH TO UNDERSTAND HOW
THE EVIDENCE IS EMERGING ON BEST
PRACTICES FOR IMPLEMENTATION AND
SCALING OF SOCIAL AND EMOTIONAL
LEARNING PRACTICES.
SO, IN APRIL OF 2024, DR. MURTHY
WENT AND VISITED ROSS ELEMENTARY
SCHOOL IN WASHINGTON, D.C. AND
MET WITH LEADERSHIP FROM THE
SCHOOL AND ALSO FROM THE OFFICE
OF THE STATE SUPERINTENDENT OF
EDUCATION TO BETTER UNDERSTAND
WHAT THAT EXPERIENCE HAS BEEN
LIKE IMPLEMENTING SOCIAL, AND
MOTIONAL LEARNING PROGRAMS ON
THE GROUND AND ALSO TO MEET WITH
STUDENTS OF THE SCHOOL AND
BETTER UNDERSTAND THEIR
EXPERIENCES WITH THE
PROGRAMMING.
SO, FOR THIS SCHOOL AND FOR THE
DISTRICT OF COLUMBIA PUBLIC
SCHOOL SYSTEM, THEY ARE ACTUALLY
FINALIZING SCHOOL-WIDE SOCIAL
AND EMOTIONAL LEARNING STANDARDS
FOR K-12 CURRICULA THIS MONTH
THAT WILL BE IMPLEMENTED IN THE
NEXT ACADEMIC.
>>> ER AND THEY WILL BE USING
BIENNIAL SURVEYS TO -- ACADEMIC
YEAR.
AND SCHOOL MENTAL HEALTH
OUTCOMES.
SO, WE HAD THE OPPORTUNITY
DR. MURTHY AND STAFF, TO WORK
WITH AND LEARN FROM THE MENTAL
HEALTH TEAM, THREE FULL-TIME
EQUIVALENTS BASED AT ROSS
ELEMENTARY SCHOOL TO BETTER
UNDERSTAND THEIR EXPERIENCE WITH
IMPLEMENTING THE PROGRAM WITH
WORKING WITH STUDENTS AND USING
THE PANORAMA SURVEY,
DISTRICT-WIDE SURVEY TO EVALUATE
AND PILOT PROGRAMS AND THEN
EVALUATE THESE PROGRAMS AND
ADJUST.
AND RECOGNIZING THAT WE ARE
CLOSE TO TIME, SO I WILL THANK
YOU FOR YOUR TIME AND WOULD BE
HAPPY TO TAKE QUESTIONS AND/OR
FOLLOW-UP SEPARATELY FOR FOLKS
AFTER THIS ENDS.
>> OKAY.
WONDERFUL.
THANK YOU VERY MUCH Ms. RUPPEL
AND WILL Ms. GARCIA DAVIS FOR
THIS WONDERFUL UPDATE.
I THINK THE WORK THAT IS
HAPPENING IN YOUR OFFICE IS
INSPIRING AND SO VERY NEEDED,
ESPECIALLY AROUND SOCIAL
ISOLATION, THE CERTAINLY AND
EMOTIONAL LEARNING COMPONENT WAS
A WONDERFUL UPDATE AND I LOOK
FORWARD TO ADDITIONAL WORK FROM
YOUR GROUP.
AT THIS POINT, I'D LIKE TO OPEN
UP THE FLOOR FOR QUESTIONS FROM
THE OTHER BOARD MEMBERS.
MAYBE I'LL START THE QUESTIONS.
ONE OF THE QUESTIONS THAT I
NOTED AS I WAS LISTENING TO THE
UPDATE IS, ON THE WORKPLACE
WELL-BEING EFFORTS FROM YOUR
OFFICE.
THERE HAS BEEN A NUMBER OF
ACTIVITIES TO DISSEMINATE THIS
WORK INTO THE COMMUNITY, AND I'M
CURIOUS ABOUT WHAT THE -- YOUR
OFFICE HAS RECEIVED IN ENGAGING
WITH THE COMMUNITY MORE BROADLY.
ARE THERE INSIGHTS OR THOUGHTS
ABOUT APPLICATION OF THIS WORK
IN DIFFERENT KINDS OF WORKPLACE
SETTINGS BEYOND HEALTH WORKERS?
>> THAT'S A GREAT QUESTION.
THANK YOU VERY MUCH FOR THAT.
WE CONTINUE TO DEFINITELY HEAR
REALLY OAF - I HEAR MORE FROM
THE COMMUNITY THAT IS RETCHING
OUT TO US.
THIS FRAMEWORK AS OPPOSED TO THE
ADVISORY ON HEALTH WORKER
BURNOUT.
THERE IS SOMETHING ABOUT WHEN WE
DEVELOPED THIS WITH OUR SMEAS,
THERE IS SOMETHING ABOUT IT
BECAUSE IT WAS A BROADER, NOT
LIMITED TO THE HEALTH SECTOR, WE
HAD VERY POSITIVE ENGAGEMENTS
AND REACTIONS.
AND I THINK WHAT WE ARE HEARING
OUTSIDE OF THE HEALTH SECTOR,
I'LL SAY IS ONGOING CONVERSA
CONVERSATION.
WE HAVE SPARKED CONVERSATION
WITHIN DIFFERENT CROSS
INDUSTRIES AND ACROSS DIFFERENT
SIZES AND I THINK IT HAS BEEN
SPEAKING TO -- HEARING FROM
SMALL BUSINESSES TO LARGE
ORGANIZATIONS AND EVEN INSIDE OF
U.S. GOVERNMENT, TO OUTSIDE.
WE ARE HEARING A LOT, I THINK,
FROM UNIVERSITIES.
I THINK UNIVERSITIES, THE ONES I
HAVE SEEN, WHO HAVE BEEN
INVOLVED IN -- WHERE A LOT OF
THE RESEARCH WAS ROOTED, FOR
EXAMPLE, WITH UPENN, BUT EVEN
SMALLER SCHOOLS HAVE REACHED OUT
FOR THINGS BECAUSE THEY WANT TO
HAVE IT AS PART OF A LOT OF THEM
HAVE BEEN EMBEDDING IT INTO
THEIR STRATEGIC PLANS, INTO
THEIR HAVING A SPECIFIC
WELL-BEING POLICY FOR THEIR OWN
FRAMEWORK, SEEING A VISUAL BEING
APPLIED IN -- THERE WAS A
UNIVERSITY THAT APPLIED IT AS
PART OF THEIR SCHOOL CURRICULUM
AND THEN ALSO WITH TRAINING
MODULES FOR THEIR ENTIRE
WORKFORCE, THAT WAS THE
UNIVERSITY OF FLORIDA, AND THEN
ALL THE WAY TO EVEN CONSULTING
COMPANIES REACHING OUT, ASKING
IF THEY COULD USE THIS AS THEY
ARE SUPPORTING OTHER COMPANIES
WITH COACHING, FOR EXAMPLE.
AND THEN I THINK IN TERMS OF
WHERE WE HEARD A LOT OF DEEPER
DIVES IS PEOPLE WANTING TO GO IN
AND -- IF YOU RECALL FROM -- WE
HAD A SLIDE HANGING HERE -- I
HAVE A HARD COPY OF EVERYTHING.
THE ESSENTIAL NUMBER 1, AND THEN
THEY ARE NOT NOBODY BUT THE ONE
THAT IS AT THE TOP, THE
PROTECTION FROM PHARM OUTSIDE OF
THE PHYSICAL SAFETY WE HEARD A
LOT OF DURING THE PANDEMIC THAT
WAS LONGSTANDING ISSUES BUT ALSO
INTENSIFYING THE SPOTLIGHT
FURTHER, ASKING FOR A LOT MORE
RESOURCES AND SUPPORT FROM
PRACTICAL WAYS TO APPLY
PSYCHOLOGICAL SAFETY, IN
PARTICULAR WITH AGENCIES EFFORTS
AROUND DIVERSITY, INCLUSION,
EQUITY AND ACCESSIBILITY,
INCLUDING DISABILITIES.
SO WE ARE ALWAYS ASKED TO HELP
ORGANIZATIONS, START THE
CONVERSATION THERE, AND THEN IT
HELPS THEIR TEAMS, IT SOUNDS
LIKE HAVE DEEPER CONVERSATIONS,
WORK WITH MANAGERS AT ALL
LEVELS, AND THEN THE OTHER ONE
THAT I'LL POINT OUT IS THE
OPPORTUNITY FOR GROWTH.
WE ARE CONTINUING TO HEAR A LOT
IN PARTICULAR WITH, BECAUSE OF
HOW MULTIGENERATIONAL WORKFORCE
IS TODAY, WITH FIVE GENERATIONS
IN ONE, NOT ONLY HOW TO RECRUIT
GEN-Z AND BEYOND BUT ALSO HOW TO
RETAIN AND UP SKILL WORKERS OF
ALL AGES AND ALL STAGES OF THEIR
CAREER, HAVE OPPORTUNITIES FOR
MENTORING EVEN AS GEN-Z OR GEN-Y
TO BE A MENTOR AS WELL AS WAYZ
TO CONTINUE TO LOOK AT MORE OF
LIKE GEN-X AND OTHERS TO
UPSCALE.
WHAT ARE THOSE ADVANCEMENT AND
THE GROWTH OPPORTUNITIES?
IT'S BEEN AN INTERESTING TIME TO
WEIGH IN AND HEAR WHAT PEOPLE
NEED.
BUT THOSE ARE THE TWO THAT
COMINGS TOGETHER THE MOST.
AND THE THIRD IS ABOUT ANATOMY.
WHAT ARE WE DOING BEYOND?
THAT IS REALLY RESONATING WITH
EVERYONE TO SHOW THEIR WORK
MATTERS AND IS CONNECTED TO THE
BROADER MISSION.
THAT'S WHAT WE ARE HEARING
ACROSS INDUSTRY.
THAT'S A LONG ANSWER TO A GREAT
QUESTION.
>> IT'S WONDERFUL AND INSPIRING
WORK.
MAYBE I'LL OPEN UP THE FLOOR.
ARE THERE ANY QUESTIONS FROM THE
OTHER BOARD MEMBERS?
DR. OMOLOLA OGUNYEMI.
>> THANK YOU FOR A WONDERFUL
PRESENTATION.
MINE IS JUST TRYING TO
UNDERSTAND.
I MENTIONED THAT SAN MATTEO
COUNTY RECOGNIZED LONELINESS AS
A PUBLIC HEALTH EPIDEMIC.
I WASN'T AWARE OF THE
IMPLICATIONS OF THAT.
IF YOU COULD SPEAK TO THAT AND
IF YOU THINK THAT THERE WILL BE
MORE OF A TREND TO THAT ACROSS
THE U.S.?
>> GOOD QUESTION.
I MIGHT INVITE CAITLIN IF SHE
FEELS COMFORTABLE TO SPEAK MORE,
BECAUSE I WAS AFTER THAT, I WAS
CLEARED.
OUR TEAM WAS LOOKING INTO IT AND
I'M ALSO CURIOUS IF THAT MEANS A
DIRECT CHANGE IN OPENING OF
FUNDS FOR RESEARCH OR PROGRAMS.
BUT I WANT TO SEE IF CAITLIN HAS
ANYTHING TO SHARE.
I'M NOT AS AWARE, BUT WE CAN
FIND OUT.
>> SO I'D BE HAPPY TO FOLLOW-UP.
I'M NOT AWARE AT THE MOMENT OF
ANY DIRECT IMPLICATIONS FOR, IN
TERMS OF POLICY CHANGE OR
CROSS-COLLABORATION AT THE LOCAL
LEVEL.
BUT WOULD BE HAPPY TO FOLLOW-UP
WITH YOU ON THAT.
>> OMOLOLA OGUNYEMI THANK YOU.
>> WONDERFUL.
I SEE IN THE CHAT A QUESTION WHO
WRITES THANK YOU FOR YOUR
IMPORTANT AND IMPACTFUL WORK.
I WONDER IF THE PROGRAMS ON
MENTAL HEALTH IN THE K12
LEARNERS ALSO ASSESS THEIR
TEACHER'S MENTAL HEALTH?
>> YES, THIS IS A REALLY
WONDERFUL QUESTION.
AND ONE THAT WE ARE WORKING
TO -- WORKING CLOSELY ON
PARTNERS WITH AND TO BETTER
UNDERSTAND.
AND THE WHAT WE'RE SEEING IS
THAT IT IS A OPTIONAL COMPONENT
OFTEN IN EVACUATIONS THAT ARE
ADMINISTERED BUT WE ARE WORKING
CLOSELY WITH THE OFFICE IN THE
DISTRICT OF COLUMBIA PUBLIC
SCHOOL SYSTEM TO BETTER
UNDERSTAND BECAUSE THEY HAVE
TAKEN THE INITIATIVE TO NOT ONLY
ADDRESS THE MENTAL HEALTH OF
THEIR TEACHERS, BUT ALSO ALL
STAFF.
AND THEY ARE ALSO LOOKING TO
UNDERSTAND AS WELL THE MENTAL
HEALTH OF THEIR PARENTS.
AND THAT INCLUDES DOING OUTREACH
SURVEYS AT THE START OF EVERY
ACADEMIC YEAR TO UNDERSTAND THE
HOME ENVIRONMENT AND DO
ASSESSMENTS AND WORKSHOPS ON
ANXIETY AND MENTAL HEALTH
CONDITIONS WITH PARENTS AND
CAREGIVERS AS WELL.
AND THOSE ARE OFTEN DONE IN
COLLABORATION WITH TEACHERS AND
STAFF AT THE SCHOOL LEVEL.
>> THANK YOU.
THANK YOU VERY MUCH.
THIS REALLY DOES EMPHASIZE HOW
THIS IS A COMMUNITY PRIORITY AND
THAT IT REQUIRES SO MANY
DIFFERENT VOICES AND
PERSPECTIVES WORKING TOGETHER TO
MAKE A DIFFERENCE.
SO THANK YOU VERY MUCH.
AGAIN, THIS IS ALWAYS SUCH A
TREAT IN THE BOARD OF REGENTS
MEETINGS TO BE ABLE TO HEAR A
REPORT FROM THE SURGEON
GENERAL'S OFFICE.
IT'S INSPIRING AND MEANINGFUL
AND PRACTICAL WORK AND WE THANK
YOU FOR IT.
SO NOW I'D LIKE TO MOVE TO THE
THIRD ITEM - OUR AGENDA WHICH IS
OUR FEBRUARY MEETING MINUTES,
WHICH WE WILL NEED TO APPROVE.
AND A LIST OF FUTURE MEETINGS.
LET'S START WITH THE FUTURE
MEETING DATES FOR THE BOARD OF
REGENTS.
WE HAVE THE NEXT UPCOMING FALL
MEETING SCHEDULED FOR SEPTEMBER
10 AND 11.
YOU CAN SEE THE FOLLOWING
MEETINGS.
AND THERE IS A NEW MEETING THAT
HAS BEEN ANNOUNCED ON MAY 12 OF
2026 FOR THE 2026 SPRING
MEETING.
WHILE NO VOTE IS NEEDED, PLEASE
DO CONTACT THE NATIONAL LIBRARY
OF MEDICINE TEAM SHOULD THAT BE
A CHALLENGE.
BUT, I REELING THANK EVERYONE
FOR PUTTING THOSE ON THEIR
CALENDAR NOW.
I'D NOW LIKE TO MOVE FORWARD
WITH THE APPROVAL OF THE
FEBRUARY 14th, 2024 MINUTES.
I'D LIKE TO REQUEST A MOTION
FROM THE BOARD TO APPROVE THESE
MINUTES.
>> SO MOVED.
>> THANK YOU VERY MUCH.
AND IS THERE A SECOND?
>> SECOND.
>> THANK YOU.
ALL IN FAVOR.
>> AYE.
>> WE HAVE GOT HANDS UP AND SOME
AYES.
WONDERFUL.
THANK YOU VERY MUCH, EVERYONE.
AND ARE THERE ANY OPPOSED?
WONDERFUL.
THANK YOU VERY MUCH.
THE MOTION CARRIES.
I'D NOW LIKE TO DRAW YOUR
ATTENTION TO A NUMBER OF UP
COMING MEETINGS OF INTEREST AND
RELEVANT TO THE WORK OF THE
NATIONAL LIBRARY OF MEDICINE.
THE FIRST IS THE MEDICAL LIBRARY
ASSOCIATION MEETING WHICH IS
BEING HELD NEXT WEEK IN
PORTLAND, OREGON.
SO WE LOOK FOLLOWED TO SEEING
MANY OF YOU THERE.
FOLLOWED BY THE AAMC MEETING IN
NOVEMBER IN ATLANTA.
AND THE TWO AMIA MEETINGS IN
2024 AND 2025 IN ATLANTA IN
NOVEMBER.
SO AT THIS POINT, I'D LIKE TO
AND DR. STEPHEN SHERRY PRESENT A
REPORT FROM THE ACTING NLM
DIRECTOR.
>> THANK YOU VERY MUCH.
I'M PLEASED TO GIVE YOU AN
UPDATE ON THE MANY EXCITING
THINGS WE HAVE GOING ON HERE AT
NLM.
OUR SUCCESS IS DRIVEN BY OUR
DEDICATED SENIOR LEADERSHIP TEAM
AND I'M PROUD TO BE JOINED HERE
BY THIS INCREDIBLE GROUP OF
FOUGHT LEADERS WITH ME.
WITH THAT SAID, I HAVE SOME
LEADERSHIP TRANSITION NEWS TO
SHARE.
AS YOU KNOW, I'M PROUD TO
CONTINUE SERVING AS YOUR NLM
ACTING DIRECTOR AND I'M EXCITED
TO SHARE THAT NIH SEARCHED TO
FIND THE PERMANENT NLM DIRECTOR
AND CONTINUES TO PROGRESS.
THEY OPENED THE SEARCH ON MAY 1
AND WILL CLOSE ON JULY 1.
NIH'S MESSAGE AND ENCOURAGE YOU
TO HELP SPREAD THE WORD TO OUR
COMMUNITIES AND STAKEHOLDERS.
DR. DSOUZZA WITH OCCS, WAS
APPOINTED TO A NEW ROLE AS
DEPUTY DIRECTOR OF THE NIH
CENTER FOR INFORMATION
TECHNOLOGY OR CIT.
AFTER A DETAIL BROUGHT HIM TO
THAT OFFICE LAST YEAR.
WE CONGRATULATE HIM AND THANK
HIM FOR ADVANCED COMMUNICATION
AND TECHNOLOGY DURING HIS TIME
WITH US.
WEI AGREED TO STAY ON AS ACTING
DIRECTOR OF OCCS.
SINCE OUR LAST GATHERING THE
BOARD HAS SEEN TRANSITIONS.
FIRST ISLAND LIKE TO THANK THOSE
WHO PLAYED IMPORTANT ROLE ON THE
BOARD AND HAVE COMPLETED THEIR
TERMS OF SERVICE, INCLUDING OUR
OUTGOING CHAIR, KRISTI HOLMES,
JENNIE LUCCA, FROM THE NIH
CHILDREN'S INAND NANCY SMIDER OF
EPIC SYSTEMS CORPORATION.
NLM IS THE GRATEFUL FOR THE TIME
AND ENERGY AND EXPERTISE AND WE
ARE BETTER FOR THEIR
CONTRIBUTIONS.
AND THE PAUL WESTER FROM THE
NATIONAL AGRICULTURAL LIBRARY
FOR HIS SERVICE AS AN EX OFFICIO
MEMBER ON THE BOARD.
HE IS NOW RETIRING.
WE WISH PAUL ALL THE BEST AND WE
WILL MISS HIM AND HAVING HIM ON
THE BOARD AS WELL.
NOW I'D LIKE TO WISH TO FORMERLY
WELCOME OUR NEWEST BOARD
MEMBERS.
DR. ANNE KWITEK, A PROFESSOR AT
THE MEDICAL COLLEGE OF WISCONSIN
AND DR. CARMEN PORTILLO, A
RETIRED PROFESSOR FROM THE YALE
UNIVERSITIY SCHOOL OF NURSING.
WE ANNOUNCED THAT BOTH WOULD BE
JOINING US, THEY HAVE NOW BEEN
FORMERLY APPOINTED BY THE
SECRETARY.
WE ARE SO HAPPY TO HAVE YOUR
VOICES AT THE TABLE, THANK YOU.
ALSO JOINING US FOR THE FIRST
TIME AND ALSO FORMERLY APPOINTED
BY THE SECRETARY, PLEASE JOIN ME
IN WELCOMING TO THE BOARD,
DR. CHRISTOPHER FOREST,
PROFESSOR OF PEDIATRICS AT THE
UNIVERSITY OF PENNSYLVANIA
SCHOOL OF MEDICINE.
DR. LOR, ASSISTANT PROFESSOR AT
THE UNIVERSITY OF
WISCONSIN-MADISON SCHOOL OF
NURSING.
DR. NIELSEN, PROFESSOR OF
INTEGRATIVE BIOLOGY AND
STATISTICS AT THE UNIVERSITY OF
CALIFORNIA-BERKELEY.
AND CHRISTOPHER SCHAFFER,
UNIVERSITY LIBRARIAN AT THE
UNIVERSITY OF CALIFORNIA SAN
FRANCISCO LIBRARY.
I KNOW YOU OFFER GREAT
EXPERIENCE AND GUIDANCE TO THE
BOARD AND FOR THAT WE ARE
GRATEFUL.
THANK YOU AGAIN FOR JOINING US
IN THIS SUPPORTIVE WORK.
ROUNDING OUT UPDATES TO THE
BOARD, WE ALSO WELCOME OUR
NEWEST EX-OFFICIO MEMBERS.
MAJOR GENERAL JOHN BARTRUM, THE
MOBILIZATION ASSISTANT TO THE
SURGEON GENERAL OF THE U.S. AIR
FORCE AND SPACE FORCE.
AND DR. HOLLY MEYER, ASSOCIATE
PROFESSOR OF MEDICINE AND HEALTH
PROFESSIONS EDUCATION AT THE
UNIFORMED SERVICES UNIVERSITY OF
THE HEALTH SERVICES.
YOUR POINTS OF VIEW ARE GREAT
AND VALUED AND WE ARE HAPPY TO
HAVE YOU WITH US.
PLEASE JOIN ME IN GIVING A BIG
WELCOME TO ALL OF OUR NEW
MEMBERS.
[ APPLAUSE ]
WE ARE VERY EXCITED TO HAVE ALL
OF YOU HERE TO SHARE UPDATES
WITH THE EXCITING PROJECTS
OCCURRING HERE AT NLM AS WELL AS
THOSE WE SUPPORT THROUGH
EXTRAMURAL FUNDING FAR BEYOND
THE NIH CAMPUS.
TO HELP SHOW YOU WHAT THAT CAN
LOOK LIKE, I'M PLEASED TO
PRESENT A NEW VIDEO THAT
SHOWCASES ONE OF NLM'S EXCITING
ADVANCEMENTS IN AI.
AT VANDERBILT UNIVERSITY, WE ARE
USING AI IN AN EXPERIMENTAL WAY
TO COMBAT THE COMMON PROBLEM OF
MEDICAL ALERT FATIGUE.
PLEASE PLAY THE VIDEO.
[ VIDEO PLAYING ]
>> WHEN I'M SEEING A PATIENT IN
CLINIC, I SOMETIMES DON'T
REMEMBER ALL OF THE THINGS THAT
I NEED TO DO AND SO THE MOST
BASIC EXPLANATION OF WHAT
DECISIONS SUPPORT IS, IT'S AN
ALERT THAT REMINDS ME AS A
DOCTOR WHAT IT IS I'M SUPPOSED
TO BE DOING TO TAKE BETTER CARE
OF MY PATIENT, OTHER ORDERING A
TEST OR PROVIDING A TREATMENT.
>> WE UNFORTUNATELY LIKE THIS SO
MUCH THAT WE SOMETIMES CREATE
SUCH A LARGE VOLUME OF ALERTS
AND SUGGESTIONS THAT NURSES AND
DOCTORS CAN FEEL FRUSTRATED.
>> ALERT FATIGUE HAPPENS WHEN
CLINICIANS CONTINUOUSLY GET
ALERTS, ESPECIALLY ALERTS THAT
ARE NOT RELEVANT TO THEM OR
THEIR PATIENTS.
SO THIGH CONTINUE TO OVERRIDE
THEM.
BUT OFTENTIMES THAT ADVICE IS
IMPORTANT FOR PATIENT SAFETY.
>> IN MY PROJECT OF USING
EXPLAINABLE AI TO OPTIMIZE
CLINICAL DECISION SUPPORT, I'M
TRYING TO IDENTIFY WAYS TO
IMPROVE ALERT LOGIC AND ALSO
IDENTIFY POTENTIAL IMPROVEMENTS
IN WORK FLOWS.
>> TRADITIONALLY, WHEN WE
EVALUATE CLINICAL DECISION
ALERTS, WE HAVE TO LOOK THROUGH
THOUSANDS OF ALERT FIRINGS EVERY
DAY.
WHAT SARAH IS DOING IS USING AI,
WHICH IS GOOD AT LOOKING AT A
LOT OF DATA.
>> I REALLY THINK THIS WAS KEY
TO THIS RESEARCH.
THERE IS SO MUCH WE NEED TO DO
IN ORDER TO FILL THE IMPORTANT
GAPS IN OUR RESEARCH KNOWLEDGE
AND BE ABLE TO ADVANCE THE
FIELD.
>> THIS IS A GRANT PROGRAM FROM
THE NATIONAL LIBRARY OF MEDICINE
AND OTHER AGENCIES THAT ALLOWS
FACULTY MEMBERS TO START OFF
WORKING ON THEIR RESEARCH
PROJECTS UNDER SOME MENTORSHIP
FOR A FEW YEARS AND THEN
TRANSITION INTO AN INDEPENDENT
AWARD TO DO THE RESEARCH THEY
WANT TO DO.
>> WE SOLVE THE NIH FUNDING.
I CANNOT DO THIS PROJECT.
TO THE IS VERY HELPFUL FOR MY
REACH AND ALSO FOR MY CAREER.
>> CUTTING-EDGE MACHINE LEARNING
TECHNIQUES TO FIND OPPORTUNITIES
TO IMPROVE OUR DECISION SUPPORT
AND WE HAVE ALREADY MADE
TREMENDOUS STRIDES IN IMPROVING
THE ACCEPTABILITY, REDUCING
ALERT FATIGUE AND MAKING ALERTS
MORE USEABLE.
>> I THINK THIS RESEARCH IS
GOING TO HELP US REALLY MAXIMIZE
AND OPTIMIZE THE WAYS IN WHICH
WE REALLY CAN UNLOCK THE
POTENTIAL OF AI FOR IMPROVING
HEALTH AND HEALTH CARE.
>> THANK YOU VERY MUCH AND
CONGRATULATIONS ON THIS EXCITING
WORK.
WHAT A GREAT STORY.
NOW I'D LIKE TO PIVOT AND TALK
ABOUT SOME OF NLM'S CURRENT
PRIORITIES AND HOW THEY ARE
RELATING TO OUR SUPPORT AND
ADVANCEMENT OF NIH'S MISSIONS IN
TERMS OF DATA COLLECTIONS AND
SERVICES.
OUR ULTIMATE MISSION AT NIH IS
TO CONNECT RESEARCH TO PRIMARY
CARE AND OPTIMIZE OUTCOMES FOR
PATIENTS.
WE DO THIS IN SEVERAL WAYS.
BY MEETING PEOPLE WHERE THEY
ALREADY RECEIVE CARE, BETTER
ENGAGE, UNDERREPRESENTED
COMMUNITIES OF RESEARCH BY USING
EHRs OR ELECTRONIC HEALTH
RECORDS TO ENGAGE PEOPLE IN
RESEARCH WITH PERMISSION.
AND BY INCREASING RESEARCH
CAPABILITIES IN EFFICIENCIES
THROUGH INNOVATIVE STUDY DESIGN
THAT ADDRESS COMMON HEALTH
ISSUES AND PREVENTION AND
IMPLEMENTATION RELEVANT TO
INDIVIDUAL COMMUNITIES.
OF PARTICULAR NOTE TO NLM, WE
CAN SUSTAIN AND ENLARGE
BIOMEDICAL RESEARCH DATA TO USE
AND INFORM NEW RESEARCH AND
IMPROVE HEALTH OUTCOMES AND
ALIGN GOALS.
INTEGRATE DATA FROM BASIC AND
SOCIAL SCIENCE RESEARCH, PUBLIC
HEALTH AND CLINICAL CARE.
WE CAN EMPLOY A FEDERATED
ARCHITECTURE FOR DATA SHARING
AND USE.
WE CAN INCREASE CAPACITY FOR
DATA HOSTING AND ENABLING LOW
COST ACCESS TO DATA USING OPEN
INDUSTRY DATA STANDARDS AND
SUPPORT BROADBAND ACCESS TO
ADVANCED ANALYTICS AND
COMPUTATIONAL POWER.
FINALLY, WE CAN RAPIDLY
DISSEMINATE EVIDENCE FOR PATIENT
AND PROVIDER DECISIONS.
ALL OF THESE PRIORITIES OF NIH
ALIGN PERFECTLY WITH NLM'S
STRATEGIC APPROACH WHICH
INCLUDES ACCELERATED DISCOVERY
AND ADVANCING HEALTH THROUGH
DATA-DRIVEN RESEARCH REACHING
MORE PEOPLE IN MORE WAYS DURING
DISSEMINATION AND ENGAGEMENT,
BUILDING A WORKFORCE FOR
DATA-DRIVEN RESEARCH AND HEALTH.
WE WILL KEEP THESE GOALS IN MIND
AS WE DEVELOP FRAMEWORKS THAT
WILL ADVANCE THESE PRIORITIES.
WITH THAT, LET ME PROVIDE YOU AN
UPDATE ON THE NIH AND NLM
BUDGETS.
MARCH 24, THE PRESIDENT SIGNED
PUBLIC LAW 118-47 WHICH FUNDED
NLM AT THE SAME FUNDING LEVEL AS
THE PREVIOUS YEAR, WHICH IS
FISCAL YEAR 2023.
SPECIFICALLY THIS WAS 497.5
MILLION DOLLARS.
AT THE SAME TIME NIH WAS FUNDED
AT 47.4 BILLION DOLLARS.
LOOKING FORWARD TO 2025, THE
APPROPRIATIONS HAS GOOD NEWS IN
THAT THE NLM'S FISCAL YEAR 25
INCLUSION IN THE PRESIDENT'S
BUDGET REQUEST IS 526.7 MILLION
DOLLARS.
THIS FUNDING LEVEL WOULD REFLECT
A 29.2 MILLION DOLLAR INCREASE
OVER CURRENT YEAR AND THE
PRESIDENT'S BUDGET, NIH OVERALL
FUNDING WOULD INCREASE BY 5.8%.
SO WE'LL SEE HOW THIS GOES IN
THE COMING MONTHS.
TURNING TO SOME OF THE OTHER
UPDATES ON OUR SERVICES AND
PRODUCTS, I'D LIKE TO START WITH
AN UPDATE ON THE DATASET CATALOG
BETA.
THESE EXCITING ACCOMPLISHMENTS
INCLUDING THE CATALOG, A
DISCOVERY TOOL POWERED BY
INNOVATIVE FRAMEWORK DEVELOPED
BY NLM CALLED THE DATASET
METADATA MODEL TOGETHER THEY
HAVE THE POTENTIAL TO ENHANCE
THE ACCESSIBILITY AND DISCOVERY
OF BIOMEDICAL DATASETS WITH
FEDERATED WEB SEARCH, THEREBY
ACCELERATING SCIENTIFIC
RESEARCH.
THINK OF THE DATASET CATALOG AS
THE PUBMED FER DATASETS AND DATA
IS SIN ANONYMOUS WITH THE JAZZ
MODEL THAT WE USE TO DESCRIBE
OUR JOURNAL CITATIONS.
THE BETA DATASET CATALOG HAD
SEVERAL EXCITING HIGHLIGHTS TO
SHARE.
CURRENTLY FOUR REPOSITORIES IN
THE CATALOG, INCLUDING DB GAP,
AN NLM PRODUCT, IMMUNOLOGY
DATABASE AND ANALYSIS PORTAL,
DRY ADD, AN NIH GENERAL
REPOSITORY AND HARVARD DATA
WORKS.
BASED ON USER FEEDBACK WE WILL
BE ADDING EIGHT MORE
REPOSITORIES AND WE HAVE SEEN
MORE THAN 4600 USERS ACCESS THE
TOOL AND PERFORM NEARLY 4000
SEARCHES.
NOW WE ARE HOPING TO INCREASE
USER FEEDBACK ON THE BETA
VERSION.
IF YOU HAVE NOT ALREADY, I
ENCOURAGE YOU TO EXPLORE THE
TOOL AND SHARE IT WITH
COLLEAGUES.
I'M ALSO NOW PLEASED TO ANNOUNCE
THAT THE NLM'S NEW CENTER FOR
CLINICAL OBSERVATIONAL
INVESTIGATIONS, ALSO KNOWN AS
THE CCOI, HAS LAUNCHED A NEW
DATASET PROFILE THROUGH OUR
LISTER HILL CENTER.
THE MISSION OF THE CCOI IS TO
REDUCE BARRIERS TO FINDING,
UNDERSTANDING AND USING LARGE
CLINICAL DATASETS.
THE DATASET PROFILES ARE FULLY
OPEN AND PUBLICLY AVAILABLE WITH
PROFILES AVAILABLE ON THE CCOI
WEBSITE THAT HIGHLIGHT,
SUMMARIZE AND AGGREGATE
INFORMATION ABOUT SELECT
CLINICAL DATASETS.
EACH DATASET PROFILE TAKES A
CURATED METADATA PROFILE COM
PLEASED OF A DATASET OVERVIEW
AND BASIC STATISTICS AND CONCEPT
COUNTS.
WHILE BOTH CCOI DATASET PROFILES
AND THE DATASET CATALOG, WHICH I
DISCUSSED A SECOND AGO, WILL
HELP DRIVE SCIENTIFIC DISCOVERY,
THE CCOI DIFFERS FROM DATASET
CATALOG HIGHLIGHTED IN THIS
TABLE.
THE GENERAL PURPOSE OF THE
DATASET CATALOG IS TO MAKE DATA
GENERALLY FINDABLE, THE PURPOSE
HERE OF A CCOI IS TO PROVIDE
IN-DEPTH CHARACTERIZATION OF
DATASETS TO DETERMINE
SUITABILITY AND ANSWER SPECIFIC
CLINICAL QUESTIONS.
EVALUATE THE DATA FOR POTENTIAL
REUSE AND SECONDARY ANALYSIS AND
ULTIMATELY IMPROVE CLINICAL
DECISIONS AND OUTCOMES.
CURRENTLY DATA IN THE CCOI FOR
THE ALL OF US RESEARCH PROGRAM,
CENTERS FOR MEDICARE AND
MEDICAID SERVICES, WHICH IS
AVAILABLE THROUGH THE VIRTUAL
RESEARCH DATA CENTER, THE
CLINICAL PRACTICE RESEARCH DATA
LINK AND THE U.K. BIOBANK.
THE LAUNCH OF THE NEW DATASETS
PROFILES, WE ARE ENCOURAGING
RESEARCHERS TO EXPLORE AND SHARE
FEEDBACK THROUGH THE FEEDBACK
BUTTON ON THE RIGHT-HAND SIDE OF
THE WEBSITE.
I'D LIKE TO THANK THE ACTING
DIRECTOR OF THE LISTER HILL
INITIAL CENTER FOR BIOMEDICAL
COMMUNICATIONS AND HIS TEAM FOR
THEIR EFFORTS IN LAUNCHING THIS
NEW AND IMPORTANT RESOURCE.
I'M ALSO PLEASED TO SHARE THAT
THE FIRST SUBMISSION FROM THE
ALL OF US RESEARCH PROGRAM AT
NIH WAS MADE AVAILABLE IN CLIN
BAR, ANOTHER NLM PRODUCT, ON
APRIL 16, 2024.
THE SUBMITTED DATASET FROM ALL
OF US, INCLUDES MORE THAN 32,000
VARIANTS FROM 61 GENES THAT HAVE
BEEN CLASSIFIED FOR 44
HEREDITARY DISEASES.
THIS INCLUDES MORE THAN 7000
VARIANTS THAT HAVE NEVER BEEN
OBSERVED AMONG PEOPLE WITH
PREVIOUS -- WHO HAVE PREVIOUSLY
HAD GENETIC TESTING.
FOR 2,700 ORGANIZATIONS
SUBMITTED DATA TO CLIN BAR TO
DATE, ALL OF US IS NOW THE
16th LARGEST SUBMITTER BY
VOLUME AND SURPASSED BY SEVERAL
CLINICAL GENETICS TESTING
LABORATORIES WITH THE ONLINE --
THE ORIGINAL COMPENDIUM OF
GENETIC VARIANTS.
ALTHOUGH THE CLIN BAR SUBMISSION
FROM ALL OF US DOES NOT INCLUDE
DATA FOR ANCESTRY PARTICIPANTS,
THE PROGRAM IS NOTABLE FOR THE
DIVERSITY OF ITS PARTICIPANTS.
THIS MAKES IT AN ESPECIALLY
IMPORTANT ADDITION TO CLIN BAR,
LIKELY TO BE HEAVILY BESIDES
OTHERWISE.
THESE VALUABLE DATA WILL HELP
CLIN BAR REPRESENT THE WHOLE
SPECTRUM OF COURTROOM DIVERSITY
THAT PERMITS A BROADER
ASSESSMENT OF SIGNIFICANCE IN
HEREDITARY DISEASES.
VERY EXCITED FOR THIS
INTEGRATION AND UPGRADE.
NEXT I'D LIKE TO GIVE YOU AN
UPDATE ON THE EFFORTS TO CREATE
A CULTURE OF CONTINUOUS
INNOVATION.
PREVIOUSLY I SHARED NLM
LEADERSHIP IS TRANSITIONING FROM
TREATING INNOVATION AS AN
OCCASIONAL ACTIVITY TO EMBEDDING
IT AS A STRATEGIC MODEL AND
ENHANCES OUR MISSION, EXPLORES
NEW STRATEGIES AND SECURES
NECESSARY RESOURCES FOR FUTURE
ADVANCEMENTS.
NLM'S LONGSTANDING ENGAGEMENT
WITH INNOVATION IS EVIDENCE BY
OUR APPLICATIONS OF AI, MACHINE
LEARNING, DATA SCIENCE, DIGITAL
TRANSFORMATION AND CUSTOMER
EXPERIENCE INITIATIVES ALL OF
WHICH UNDERSCORE OUR
FORWARD-THINKING APPROACH.
RECOGNIZING THE IMPORTANT OF
AGILITIY AND CREATIVITY, OUR
LEADERSHIP IS COMMITTED TO
CULTIVATING CONTINUOUS
INNOVATION THAT HELPS EVERYONE
AT THE LIBRARY, CRITICAL FOR
DEVELOPING AND IMPLEMENTING NEW
IDEAS AND MAINTAINING INNOVATION
AS A FUNDAMENTAL ASPECT OF OUR
IDENTITY AND STRATEGY.
OVER THE PAST SEVERAL MONTHS, WE
ENGAGED COLLECTIVELY AND
COLLABORATION AMONG EXECUTIVE
LEADERS, SUPERVISORS AND STAFF
AND STRENGTHENED OUR CULTURE.
I'M EXCITED TO REPORT
SUBSTANTIAL PROGRESS IN THESE
COLLABORATIVE EFFORTS THAT
REMAIN A TOP PRIORITY FOR NLM
LEADERSHIP TEAM.
OUR MODEL OF INNOVATION CAN BE
APPLIED THROUGHOUT THE NLM AND
EMBEDDED AT ALL LEVELS.
WE ARE ADVANCING FOUR MAJOR
COMPONENTS ON OUR ROADMAP,
INCLUDING GOVERNANCE AND
MANAGEMENT AND IDEAL LIFE CYCLE
AND DEPLOYMENT AND MEASUREMENT
AND ORGANIZATIONAL READINESS.
THESE COMPONENTS COLLECTIVELY
FOSTER THE SHARED VALUES,
BELIEFS AND BEHAVIORS AND
PRACTICES THAT SUPPORT THE
GENERATION AND IMPLEMENTATION OF
NEW IDEAS AND SOLUTIONS AND
APPROACHES.
THROUGH THE REMAINDER OF THE
FISCAL YEAR, WE'LL CONTINUE TO
DEVELOP AND TEST KEY COMPONENTS
FOR THE CONTINUOUS INNOVATION
MODEL AND START IMPLEMENTATION
RESULTING IN PRIORITIZATION OF
FURTHER STEPS AND CONTINUE OUR
PURSUITS STARTING IN OCTOBER AND
BEYOND.
SWITCHING GEARS TO THE MOST
RECENT STATE OF THE UNION
ADDRESS, PRESIDENT BIDEN
DESCRIBED HIS VISION FOR
TRANSFORMING WOMEN'S HEALTH
REACH BY SIGNING EXECUTIVE ORDER
14120 ON ADVANCING WOMEN'S
HEALTH RESEARCH INNOVATION.
THE EXECUTIVE ORDER WILL EXPAND
AND ENHANCE RESEARCH ON WOMEN'S
HEALTH AND PROVIDE DIRECTORS TO
ENSURE IT IS PRIORITIZED ACROSS
THE FEDERAL RESEARCH PORTFOLIO
AND BUDGET.
THIS INCLUDES A PROVISION FOR
YOU IN TO PROVIDE A FRONT DOOR
FOR -- NIH -- EASY ACCESS FOR
FUNDING OPPORTUNITIES AND OTHER
INFORMATION.
NLM IS THE PARTNERING WITH THE
NIH OFFICE OFFICE OF RESEARCH ON
WOMEN'S HEALTH TO SUPPORT THIS
EFFORT THROUGH THE DEVELOPMENT
OF INFRASTRUCTURE AND A SYSTEM
TO HELP THE PUBLIC, RESEARCHERS
AND HEALTH CARE PROVIDERS AND
EVERYONE BY NIH SUPPORTED
RESEARCH, LITERATURE, DATA,
TERMINOLOGIES AND OTHER
INFORMATION ON WOMEN'S HEALTH
TOPICS.
THE DISCOVERY SERVICE WILL BE
IMPLEMENTED IN PHASES AND WE
ANTICIPATE THE FIRST PHASE WILL
LINK TO NLM RESOURCES SUCH AS
PUBMED, MEDLINE PLUS AND
CLINICALTRIALS.GOV AS WELL AS
NIH FUNDING INFORMATION.
ONCE DEVELOPED, NLM WILL PROVIDE
ENHANCEMENTS TO COLLIDE
ADDITIONAL INFORMATION AND
INNOVATIVE TOOLS ANDY RADIOURS
SOS SUCH AS COMMON DATA
ELEMENTS, DATASETS, OTHER
RELEVANT TERMINOLOGIES AND
TOPICS.
THIS AFTERNOON, YOU'LL HEAR MORE
ABOUT NIH'S WOMEN IN HEALTH
PRIORITIES AND THE EXECUTIVE
ORDER FROM OUR GUEST, DR. AUSTIN
CLAYTON.
NLM IS EXCITED TO PARTNER - THIS
IMPORTANT AREA OF RESEARCH AND
CONTRIBUTING TO ADVANCE THE
HEALTH OF WOMEN.
I'M PLEASED TO SHARE NEWS FROM
OUR COMPARATIVE GENOMICS
RESOURCE.
ALPHA VERSION OF THE STAND ALONE
EUKARYOTIC GENOME ANITITION
PIPELINE SUITABLE FOR THE
ANNOTATION OF GENES AND MOST
VERTEBRATES AND ARTHEROPODS IS
PUBLICLY AVAILABLE.
GIVEN THE SEQUENCE OF A GENOME,
IT CAN PROVIDE THE COORDINATES
OF THE GENES BASED ON PROTEIN
AND RNA-SEQ ALIGNMENTS
COMPLIMENTED WITH PREDICTIONS.
BEST THING ABOUT PIPELINE BY
USERS IS ONGOING.
ALSO IN GENETIC SEQUENCING NEWS,
I'M PROUD TO SHARE THAT THE JEN
BANK REDUCED THE BACKLOG FOR
NON-WHOLE GENOME SEQUENCES FROM
OVER ONE YEAR BACKLOG TO LES
THAT ONE WEEK.
THIS IS AN INCREDIBLE EVENT.
IN THE CHART HERE, THE YELLOW
LINE REPRESENTS SUBMISSIONS
WHERE THE SUBMITTER IS ASKED FOR
THE DATA TO BE IMMEDIATELY AFTER
PROCESSING.
THE GREEN LINE REPRESENTS
SUBMISSIONS WITH FUTURE RELEASE
DATES TIED TO THEIR FUTURE
PUBLICATION.
FOR BOTH CATEGORIES, THE BACKLOG
WAS REDUCED AND MADE POSSIBLE BY
NCBI IMPLEMENTING PRACTICES TO
INCREASE EFFICIENCY BY THE
CURATION STAFF.
AIL SEQUENCE DATA SUBMITTED ARE
BEING RELEASED SHORTLY AFTER
SUBMISSION ALLOWING USERS TO
ACCESS THE DATA AND DETECT HUMAN
HEALTH BASED ON THE LATEST
GENOMIC SEQUENCE DATA.
IN APRIL, 2024, AFTER A TWO YEAR
COLLABORATION BETWEEN NLM LISTER
HILLENT AND NCBI AND OUR
INDEXING TEAM, PUBMED INDEXING
HAS TRANSITIONED FROM MTIA,
WHICH IS MEDICAL TEXT INDEXER
THAT IS AUTOMATED TO MTIX, WHICH
IS NEXT GENERATION.
THIS IS A NEURAL NETWORK THAT
OUTPERFORMS BY UNDERSTANDING
COMPLEX REPRESENTATIONS OF
CONCEPTS AND RECOGNIZES ABSTRACT
IDEAS THAT ARE NOT LITERALLY
STATED IN THE TEXT.
IT CAN PREDICT SOME CONCEPTS
BASED ON THE FULL TEXT OF THE
ABSTRACT.
IT CAN AVOID CONTEXTURAL ERRORS
WHEN ENCOUNTERING MEDICAL
LANGUAGE, FOR EXAMPLE, IT CAN
RECOGNIZE CONCEPT OF FRACTURES
FROM INTERRUPTED AND REORDERED
PHRASES LIKE IN KNEE FRACTURES,
FRACTURES OF THE FEMUR AND HIP
OR LOCATIONS IN THE HIP.
IT MAKES DETERMINATIONS BASED ON
MANY FEATURES AND NOT JUST
TRIGGER WORDS, IT CAN RECOGNIZE
ABSTRACT IDEAS THAT ARE NOT
LITERALLY STATED IN THE TEXT AS
WELL AS PREDICT CONCEPTS PRESENT
IN THE FULL TEXT OF THE ARTICLE.
ALSO AVOID CONTEXTURAL ERRORS
WHEN ENCOUNTERING MEDICAL
LANGUAGE.
FOR EXAMPLE, IT WILL NOT INDEX
ELEPHANTS ON AN ARTICLE THAT
CONTAINS THE IDIOM, ELEPHANTS IN
THE ROOM T MAINTAINS A SIMILAR
LEVEL OF PRECISION.
IT MAKES LARGE GAINS AND RECALL
WITH ALL CORRECTLY APPLIED 50%
MORE TERMS -- HUMAN CURATORS
WILL CONTINUE TO PLAY AN
IMPORTANT ROLE IN THE QUALITY
ASSURANCE GOING FORWARD.
WE ARE ALSO WRAPPING UP NLM'S 6
MONTH AGENDA FROM THE PILOT
WHICH AIMS TO EMPOWER STAFF TO
EXPERIMENT WITH LARGE LARGE
MODELS WHILE DEVELOPING OUR
WORKFORCE SKILLS AND SUPPORT A
COMMUNITY OF PRACTICE.
THIS PILOT SIGNIFIES OUR CULTURE
OF INNOVATION.
IT ALLIANCE WITH OUR STRATEGIC
VISION AND SUPPORTS THE NIH DATA
SCIENCE STRATEGIC INITIATIVES.
PILOT TEAMS FROM ACROSS THE
LIBRARY SUCCESSFULLY COMPLETED
PROOF OF CONCEPTS AND THE
RESULTS ARE PROMISING.
MOVING FORWARD, WE WILL EVALUATE
WHERE TO INVEST IN THESE
PROJECTS AND NEW USE CASES.
THE NEXT STAGE IS MEASURING
RESULTS TO ENSURE SAFE AND
UNBIAS AND RELIABLE RESULTS
USING AI RISK MANAGEMENT
FRAMEWORK.
THIS MARCH, OUR OFFICE OF
STRATEGIC INITIATIVES HOSTED THE
4TH ANNUAL NLM LECTURE ON
SCIENCE TECHNOLOGY AND SOCIETY
AND AI EXPERT AND AUTHOR,
MEREDITH BROUSSARD DISCUSSED AI
DIAGNOSES DISEASES DIFFERENTLY
THAN DOCTORS AND USED HER OWN
EXPERIENCE WITH CANCER AS AN
EXAMPLE.
IT SUPPORTS STRATEGIES TO ENSURE
THESE UNIQUE AI ALGORITHMS
REMAIN ACCURATE.
THE LECTURE HAS BEEN VIEWED 1100
TIMES ON YouTube AND THE
VIDEOCAST AND RESULTED IN A BLOG
POST TO DISSEMINATE THE THEMES
FROM THE LECTURE TO A BROADER
AUDIENCE.
I ENCOURAGE YOU TO LISTEN TO THE
LECTURE IF YOU HAVEN'T ALREADY.
ALSO, I'D LIKE TO REMIND YOU
THAT YOU ARE VERY EXCITED TO
WITH WELCOME DR. MAYA HIGH TOWER
TOMORROW TO DELIVER THE 2024
JOSEPH LIGHTER NLM LECTURE.
AGAIN THAT IS TOMORROW ON MAY 15
AT 2:00 P.M. EASTERN TIME.
HER LECTURE IS ENTITLED,
RESPONSIBLE AI IN HEALTH CARE, A
PRACTICAL APPROACH AND IT WILL
BE LIVE STREAMED ON THE NIH
VIDEOCAST.
SHE IS THE LEADING VOICE AND
INTERCEPTION OF HEALTH CARE AND
TRANSFORMATION AND HEALTH CARE.
A CHAMPION FOR ARTIFICIAL
INTELLIGENCE ENSURING THE
DIGITAL FUTURE OF HEALTH CARE IS
EQUITABLE AND JUST.
I HOPE YOU WILL ALL JOIN US.
WE ARE ALSO HAPPY TO ANNOUNCE
THAT NLM HAS ADOPTED GOOGLE
ANALYTICS 4 IN APRIL 2024 TO
HELP US KNOW OUR USERS BETTER.
WE HAD PREVIOUSLY USED GOOGLE'S
UNIVERSAL ANALYTICS 360 FOR MANY
YEARS TO HELP MEASURE AND
EVALUATE THE VALUE OF SERVICES.
OUR PREVIOUS METRICS MEASURED
THE NUMBER OF VISIT TO THE NLM
MAIN WEB PAGES AS WELL AS OUR
INDIVIDUAL WEB SERVICES.
WITH THE MIGRATION TO GA4, THIS
WILL IMPROVE DATA PRIVACY IMPACT
FOOTPRINTS AND WE WILL HAVE
FURTHER INSIGHTS AS THE USE OF
OUR SITES AND SERVICES.
THESE INSIGHTS INCLUDE
UNDERSTANDING USER INTERACTIONS
ACROSS PLATFORMS WITH A HOLISTIC
VIEW OF USER BEHAVIOR.
THIS COULD HELP US UNDERSTAND
INTERACTION, SCROLLS, SEARCHERS,
CLICKS, DROPS OFF, LINK FOLLOWS
OR LOOKS AT A VIDEO AS WELL AS
IMPACT OF CONTENT AND FUTURE
UPDATES AND CUSTOMER METRICS.
THIS ACCOMPLISHMENT ENHANCES THE
STRATEGIC OBJECTIVE TO CREATE
SUSTAINABLE AND -- ENHANCE OUR
INFORMATION DELIVERY AND TO KNOW
OUR NLM USERS AND ENGAGE WITH
PERSISTENCE.
NOW I'D LIKE TO SPEND A FEW
MINUTES TALKING ABOUT OUR
INTRAMURAL RESEARCH PROGRAM OR
THE IRP.
IT IS ESPECIALLY WONDERFUL TO
SHARE WITH YOU THE AWARDS AND
HONORS PRESENTED TO NLM
INVESTIGATORS SINCE LAST
SEPTEMBER.
FIRST DR. EUGENE COON IN WAS
ELECTED AS FELLOW OF THE
INTERNATIONAL SOCIETY OF
COMPUTATIONAL BIOLOGY.
ADDITIONALLY HAVING RECEIVED NIH
DIRECTOR'S AWARD IN THE UNITE
CODE CHAIR CERTIFICATE OF
SERVICE ON THE ANTI-RACISM
STEERING COMMITTEE, WE RECOGNIZE
DR. DINA FURB MAN.
AND DR. THERESA RECEIVED THE
ROSALIND FRANKLIN SOCIETY
SPECIAL AWARD IN SCIENCE.
PLEASE JOIN ME IN CONGRATULATING
ALL OF THEM ON THEIR OUTSTANDING
ACHIEVEMENTS.
HERE IS A SMALL SAMPLING OF THE
95 PUBLICATIONS IRB
INVESTIGATORS HAVE CONTRIBUTED
SINCE SEPTEMBER.
INVESTIGATORS PUBLISHED IN
SCIENCE, SEVERAL NATURE
JOURNALS, COMMUNICATION, AND
MEDICINE TO NAME A FEW.
TOPICS COVERED EVERYTHING FROM
EVOLUTIONARY SELECTION OF
PROTEINS, LEARNING MORE ABOUT
CAREGIVER ATTITUDES AND
ANALYZING CLINICAL NOTES.
WE ARE PROUD TO RECOGNIZE THESE
INVESTIGATORS FOR THE RESEARCH
AND ARTICLES THEY ARE PUBLISHING
IN THE ADVANCE OF SCIENCE AND
NIH MISSION.
NLM WORKED TO HELP BUILD
INTRAMURAL RESEARCH PROGRAM
TEAM.
THE TRAINING OFFICE HAS
PARTICIPATED IN RECRUITMENT
EVENTS IN FY24 EVENTS AT THE
AMIA ANNUAL SYMPOSIUM AND MORGAN
STATE UNIVERSITY AND OTHER
INSTITUTIONS AND EVENTS.
WE ARE CONNECTED WITH PROGRAM
CONTACTS AT LOCAL INSTITUTIONS
WHO PAVE THE WAY FOR FUTURE
COLLABORATION AND RECRUITMENT TO
NLM PROGRAMS AT MONTGOMERY,
MORGAN STATE UNIVERSITY AND
UNIVERSITY OF MARYLAND, COLLEGE
PARK.
I LOOK FORWARD TO SHARING
RECRUITS OF THESE RELATIONSHIPS
AT A FUTURE UPDATE.
WE HAVE EXPANDED OUR DATE AT
SCIENCE AND INFORMATICS SCHOLARS
PROGRAM AND WILL WELCOME A
RECORD NUMBER OF INTERNS THIS
SUMMER.
THEY INCLUDE 32 SUMMER INTERNS
SELECTED FROM 28 INSTITUTIONS.
IN ADDITION TO THE SUMMER
INTERNS, NLM CONTINUES TO
RECRUIT AND TRAIN TALENTED
RESEARCHERS IN POSTDOCTORAL,
POSTBACCALAUREATE PROGRAMS.
RESEARCHERS INCLUDE A TOTAL OF
45 POSTDOCTORAL FELLOWS,
GRADUATE STUDENTS, 16 POSTBACS
AND EXPECTED TWO MEDICAL
STUDENTS AND RESIDENTS.
WE LOOK FORWARD TO SEEING THE
OUTCOMES OF RESEARCH AND SHARING
WITH YOU IN THE FUTURE.
NOW I'D LIKE TO TAKE A FEW
MOMENTS TO DISCUSS THE STAFF
MEMBERS WHO WORKED HARD SIPS LAT
BOARD MEETING.
I'D LIKE TO ACKNOWLEDGE THOSE AT
NCBI, CARROL HUT ON,
DR. CUNNINGHAM AND
DR. SMITH-WHITE WITH THE
SEQUENCE ENHANCEMENTS PROGRAM.
EACH OF THESE INDIVIDUALS AD
GREAT VALUE IN THEIR AREAS OF
EXPERTISE AND ALREADY HAVE YEARS
OF SERVICE AND CONTRIBUTIONS TO
NLM.
NCBI SAW TWO OTHER STAFF
SCIENTISTS DEPART.
DR. JIN AND DR. POPOVA, ADDED
GREATLY TO THE MEDICAL GENETICS
AND VARIATION PROGRAM WITHIN THE
INFORMATION ENGINEERING BRANCH
AT NCBI.
WE THANK THEM FOR THEIR EFFORTS
AND CONTRIBUTIONS AND WISH THEM
WELL ON FUTURE ENDEAVORS
[ READING ]
PLEASE JOIN ME IN CONGRATULATING
EACH OF OUR NEW STAFF MEMBERS ON
THEIR JOURNEYS AT NLM.
NOW I'D LIKE TO TURN IT OVER TO
OUR ASSISTANT DIRECTOR FOR
POLICY DEVELOPMENT, DR. C I BAN
FOR UPDATE ON POLICY AND ISSUES
GOING ON.
>> THANK YOU.
GOOD MORNING EVERYONE.
THIS MORNING I WANTED TO SHARE
SOME BRIEF POLICY AND
LEGISLATIVE UPDATES AS ALWAYS.
I ENCOURAGE YOU TO REVIEW THESE
FOR MORE DETAILS AND LINKS FOR
MORE INFORM.
THERE HAVE BEEN SEVERAL POLICY
ACTIVITIES THAT ARE OF INTEREST
TO NLM RECENTLY AND I'LL
HIGHLIGHT JUST A COUPLE HERE.
FIRST A COUPLE OF MONTHS AGO THE
NATIONAL ACADEMIES OF SCIENCE,
ENGINEERING AND MEDICINE
PUBLISHED PROCEEDINGS
SYNTHESIZING DISCUSSIONS FROM
THE ENHANCED PUBLIC ACCESS TO
THE RESULTS OF RESEARCH
SUPPORTED BY THE HEALTH AND
HUMAN SERVICES WORKSHOP HELD
LATE LAST YEAR.
WE WILL LOOKED TO BOARD TO
DISSEMINATE THE DRAFT OF DATA
POLICY.
IN ADDITION AT THE END OF MARCH,
THE OFFICE OF THE NATIONAL
HEALTH INFORMATION TECHNOLOGY
RELEASED THE DRAFT 2024-2030
FEDERAL HEALTH IT STRATEGIC PLAN
FOR PUBLIC COMMENT.
WE HAD AN OPPORTUNITY TO PROVIDE
INPUT INTO THIS PLAN AND WANTED
TO SHARE THIS PUBLIC COMMENT
OPPORTUNITY WITH YOU.
COMMENTS ARE DUE BY MAY 28.
WE CONTINUE TO MONITOR
ARTIFICIAL INTELLIGENCE OR
AI-RELATED POLICY AND
LEGISLATIVE ACTIVITIES, THIS IS
AN AREA OF INTEREST TO NLM AS
EVIDENCE BY STEVE'S UPDATE.
I WANTED TO HIGHLIGHT A COUPLE
OF RECENT ACTIVITIES ON APRIL 8,
THE NATIONAL ACADEMY OF MEDICINE
PUBLISHED THE AI AND HEALTH CARE
BIOMEDICAL SCIENCE CODE OF
CONDUCT PRINCIPLES AND
COMMITMENTS DISCUSSION DRAFT.
THIS IS DEVELOPED A PART OF A
PROJECT THAT IS BEING COFUNDED
BY THE NATIONAL LIBRARY OF
MEDICINE, THE DESTRUCTION
PRESENTS FRAMEWORK FOR USE OF AI
IN HEALTH CARE AND BIOMEDICAL
SCIENCE.
PUBLIC COMMENTS WERE DUE EARLIER
THIS WILL MONTH.
IN LATE MARCH, THE OFFICE OF
MANAGEMENT AND BUDGET ISSUED A
MEM RANDOM, ADVANCING
GOVERNMENTS, INNOVATION AND RISK
MANAGEMENT FOR AGENCY USE FOR
ARTIFICIAL INTELLIGENCE
ESTABLISHING NEW FEDERAL AGENCY
REQUIREMENTS AND GUIDANCE FOR AI
GOVERNANCE AND RISK MANAGEMENT.
THERE ALSO CONTINUES TO BE GREAT
INTEREST IN CONGRESS AND AI.
JUST LAST WEEK SENATOR SCHUMER
ANNOUNCED A WORKING GROUP WILL
BE RELEASING A AI ROADMAP IN
COMING WEEKS EXPECTED TO PROVIDE
HAY FRAMEWORK FOR ADDRESSING
RISKS AND POTENTIAL BENEFITS OF
AI, PROVIDING THE PUBLIC WITH
THE SENSE OF SENATE PRIORITIES
AND GOALS AI LEGISLATION MOVING
FORWARD.
FURTHERMORE, 25AI RELATED BILLS
HAVE BEEN INTRODUCED.
6 OF WHICH WERE INTRODUCED SINCE
THE LAST BOARD OF REGENTS
MEETING AND THESE BILLS FOCUS ON
A VARIETY OF TOPICS, TRAINING
DATA, ALGORITHMS, STANDARDS,
TRANSPARENCY AND SECURITY AND
TEST DEVELOPMENT.
STEVE NOTED THE PRESIDENT'S
BUDGET REQUEST WAS RELEASED IN
MID-MARCH ALONG WITH THE RELEASE
OF NLM'S CONGRESSIONAL
JUSTIFICATION AND NIH'S BUDGET
REQUEST.
I ENCOURAGE YOU TO READ THE
FRAMEWORK HIGHLIGHTING OUR
ACCOMPLISHMENTS AND SUMMARIZING
PRIORITIES.
SINCE THEN -- ALSO WITH THE NIH
BUDGET REQUEST, NLM WORK AND
CONTRIBUTIONS TO NIH PRIORITIES
ARE HIGHLIGHTED IN WHAT ARE
CALLED TWO CROSSCUTTING
INITIATIVE SECTIONS OF THE
BUDGET REQUEST.
ONE FOCUSES ON OUR CONTRIBUTIONS
ON WORK AND AI AND THE SECOND
OUTLINES NIH, INCLUDING NLM
CONTRIBUTIONS TO THE FUTURE OF
THE BIOMEDICAL WORKFORCE.
AND THEN IN TERMS OF THE SECONDE
HAS TESTIFIED IN FIVE DIFFERENT
HOUSE AND SENATE COMMITTEE
HEARINGS REGARDING THE U.S.
BUDGET REQUEST.
THE TWO LISTED ON THE SLIDE WERE
BEFORE HOUSE AND SENATE
APPROPRIATION COMMITTEES
RESPECTIVELY BUT IN ADDITION TO
THAT, HE TESTIFIED IN THREE
OTHER COMMITTEES W THAT, I WILL
TURN IT BACK OVER TO STEVE.
>> THANK YOU.
SO, I THINK THAT IS THE END OF
MY UPDATE TO THE BOARD AND I
HAVE A FEW MINUTES FOR
DISCUSSION AND ANY QUESTIONS.
THANK YOU.
>> WONDERFUL, STEVE, THANK YOU
VERY MUCH.
THANK YOU.
THIS IS A TREMENDOUS UPDATE AND
IT'S CLEAR TO SEE THAT THINGS
ARE BUSY AT NLM.
SO I WILL OPEN UP THE FLOOR TO
SEE IF THERE ARE QUESTIONS FROM
OUR BOARD FOR STEVE OR THE
OTHERS.
PHILIP?
>> YES, HELLO, EVERYONE.
NICE AS ALWAYS.
I LOVE THESE UPDATES.
I HAD TWO QUESTIONS RELATED TO
THE CCOI.
ONE, WHAT'S THE FUTURE ROADMAP,
ADDITIONAL SOURCES?
I SEE WE HAVE FOUR RIGHT NOW.
TWO FROM U.S., TWO FROM U.K.
JUST CURIOUS ABOUT OTHER SOURCES
WHETHER THEY ARE NATIONAL OR
INTERNATIONAL?
AND WITH SO MUCH DISCUSSION OF
AI OVER THE LAST 10 MINUTES, IS
THERE GOING TO BE ANY GUIDANCE
PUT FORTH WITH THE DATA USE
AGREEMENTS AND AI FOR CCOI?
>> THE MICROPHONE IS MUTING ME.
THANKS PHILIP.
I THINK THOSE ARE GREAT
QUESTIONS.
REGARDING CCOI, WE ARE IN
DISCUSSIONS WITH SEVERAL
INSTITUTES RIGHT NOW ABOUT
POTENTIALLY WORKING WITH THEM TO
HOLD COMPREHENSIVE DATASETS.
THERE IS ALSO SOME DISCUSSION
WITH CMS ABOUT EXTENDING A
RICHER REPRESENTATION OF THEIR
DATA AS WELL.
I CAN'T REALLY GO INTO DETAILS
BECAUSE IT HASN'T BEEN FULLY
DEVELOPED BUT WE COULD IMAGINE
THAT CCOI -- RIGHT NOW WE HOLD
THE WHOLE CONTENT OF WHAT WE ARE
PROVIDING ARE THESE AGGREGATED
METADATA LIKE OR CHARACTERIZING
MEASUREMENTS TO HELP
INDIVIDUALS, INVESTIGATORS
UNDERSTAND WHICH DATASETS MIGHT
HAVE DATA.
WOULD IT BE SUFFICIENTLY POWERED
IS THE VARIABLE THERE.
DOES IT HAVE THE RIGHT BALANCE,
ET CETERA?
THOSE ARE THINGS WE CAN TRY TO
ANSWER WITHOUT -- BASICALLY WHAT
IS THE PEAK YOU LOOK LIKE BEFORE
YOU GO IN AND REQUEST ACCESS?
IS IT USEFUL?
SO THERE ARE OTHER LARGE SETS WE
WOULD WORK WITH TRYING TO GO AND
MAYBE JIM IS AVAILABLE TO SEE IF
THERE IS ANYTHING THAT IS
ALREADY ON THE FLIGHT PATH.
YOUR SECOND QUESTION, JIM -- ARE
YOU ABLE --
>> I AM HERE, STEPHEN.
I'LL WAIT UNTIL YOU'RE DONE.
>> OKAY, TO ANSWER YOUR SECOND
QUESTION AROUND AI AND
MANAGEMENT OF RIGHTS.
THIS IS AN AREA OF GREAT
INTEREST TO NIH.
AS YOU CAN IMAGINE, AGO A LITTLE
BIT OF THE WILD WEST ON WHAT
INDUSTRY IS DOING.
AS OPEN AS WE CAN SEE READING IN
THE MEDIA WITH ELON MUSK AND
OTHERS ADVENTURES
INTERNATIONALLY.
I DON'T KNOW WHAT IS APPROPRIATE
OR WHAT IS THE FRAMEWORK OF
LICENSE, BUT WE ARE IN
CONVERSATIONS WITH ALL PARTIES
ABOUT THIS AND TRYING TO
UNDERSTAND WHERE IS APPROPRIATE
FOR US TO GENERATE CONTENT AND
WHERE CAN WE SUPPORT THESE
EFFORTS.
IT MIGHT BE IN A COMPLEMENTARY
WAY AROUND DOING THINGS LIKE
ALGORITHMIC AUDITING.
IS THERE A FRAMEWORK OR
OPPORTUNITY TO LOOK AT THE
COMPOSITIONAL BIAS OR THE
PERFORMANCE AND THE
REPRESENTATION OF THESE
ALGORITHMS.
THAT'S SUBJECT TO SOME OF THESE
LECTURES, WHICH IS WHY I PUT
THEM IN MY DIRECTOR UPDATE.
THAT IS A STRATEGIC AREA I'M
TRYING TO LEAD NLM INTO IS
AROUND DOING THE RISK OF
UNDERSTANDING AND SOME SORT OF
TRANSPARENCY AND INSIGHT INTO
HOW AI IS PERFORMING IN A
VARIETY OF USAGE CASES.
SO HAVING SAID THAT, I'M GOING
TO GIVE IT BACK TO YOU FOR THE
FIRST QUESTION.
ARE THERE ANY OTHER DATASETS
THAT ARE BEING TARGETED?
>> RIGHT NOW, WITH DR. LEE
JOINING THE CCOI, HER FOCUS IS
GOING TO BE LOOKING AT DATASETS
WITH MINORITIES, UNDERSERVED
POPULATIONS AND RARE DISEASES.
SO WE ARE ACTIVELY LOOKING FOR
DATASETS THAT WE CAN INCLUDE
INTO THE CCOI THAT WOULD HELP
STUDIES IN THOSE DEMOGRAPHIC
AREAS.
AND -- OTHER THAN WHAT YOU HAVE
ALREADY MENTIONED.
THOSE ARE THE MAIN FOCUSES ON
THE CCOI LOOKING AT NEW DATASETS
RIGHT NOW.
>> AND THE LAST THING ON AI,
SOMETHING WE ARE TRYING TO DO
WITH NLM IS A RESPONSIBLE AI
TEAM.
SO WE ARE EMBEDDING A TEAM
LEADER AND A THOUGHT LEADER
WITHIN EACH OPERATIONAL DIVISION
OF THE NLM THAT IS VERSED IN THE
RISK MITIGATION PLATFORMS IN A
VARIETY.
NIST HAS MACHINE LEARNING.
THEY WILL HAVE ONE COMING OUT
THIS YEAR ON LARGE LANGUAGE.
THERE IS THE FDA VERSION THAT
MIGHT BE COMING OUT.
SO WE ARE TRYING TO BE
CONVERSIVE AND TRANSLATING OR
ADVOCATING THE APPLICATION OF
THESE PRINCIPLES ALL THE WAY
THROUGH OPERATIONAL PRACTICES
DEVELOPING OUR OWN INTERNAL AI
SYSTEMS AS WELL.
>> STEVE, DIANE MENTIONED AND I
FORGOT TO MENTION IT.
WE ARE OPEN IF THERE ARE IDEAS
FOR DATASETS THAT WE MIGHT WANT
TO CONSIDER FOR INCLUSION IN THE
CCOI.
THANK YOU, DIANE.
>> IDEAS WELCOME TO THOSE.
A FINAL FUTURE POSSIBILITY, I'M
JUST GOING TO SAY, I DON'T KNOW
BECAUSE IT'S NOT ON OUR
STRATEGIC PLAN YET, BUT WE ARE
ASSESSING FEASIBILITY AND THE
FRAMEWORK -- IT DOESN'T MAKE
SENSE FOR US TO IMAGINE
SUPPORTING ANY KIND OF
ENCLAVE-LIKE SERVICE WHERE
PEOPLE COULD COME IN WITH THEIR
OWN RESOURCES FUNDING TO COMPUTE
ON THE DATA IN A SECURED CLOUD
ENVIRONMENT.
BECAUSE WE ARE SETTING THIS UP
IN A MODERATE ENVELOPE.
SO THAT MIGHT BE A FUTURE
OPPORTUNITY IF REQUIREMENTS
DEMANDS AND RESOURCES ARE
ALIGNED.
BUT I THINK WHAT WE ARE STARTING
WITH IS THE REPRESENTATION OF
THESE LARGE DATASETS AND THEIR
INDEXING AND WHAT CAN WE DO
PUBLICLY TO ADVERTISE THE
PROPERTIES.
>> THANK YOU FOR THE UPDATE.
ALSO CONGRATULATIONS ON THE
PROGRESS MAKING ACROSS-THE-BOARD
WITH EVERYTHING YOU HIGHLIGHTED
IN THE SUMMARY.
I DO HAVE A QUESTION FOR YOU ON
THE CONTINUOUS INNOVATION MODEL
THAT YOU SUMMARIZE.
AND MAYBE YOU COULD POINT UT TO
MORE DETAILS IF THAT'S
APPROPRIATE BUT I THINK ON THE
VISUAL AREAS SHOWED 65-80%
PROGRESS.
AND I WAS WONDERING IF YOU COULD
ELABORATE VERY BRIEFLY ON THE
TYPES OF THINGS THAT ARE
COMPLETE AND THE TYPES OF THINGS
THAT ARE OUTSTANDING AND MOST
IMPORTANTLY, WHEN THOSE ARE AT
100%, CAN YOU ELABORATE ON WHAT
THAT THEN PROVIDES?
>> SO, WHAT WE'RE DOING IN THOSE
FOUR CATEGORIES THAT I'LL HAVE
PARTIAL COMPLETION, IS BUILDING
OPERATIONAL PROCEDURES.
SO, NOTHING IS COMPLETE
BECAUSE -- WHAT WE ARE TRYING TO
ELEVATE IS CONTINUOUS INNOVATION
FROM AN OPPORTUNISTIC PROGRAM.
WE WANT TO GO HERE AND BUILD X.
BUT SOMETHING THAT ALLOWS ALL
DIVISIONS A WAY TO PITCH IDEAS
WITHOUT BEING PEJORATIVE, IT'S
NOT LIKE SHARK TANK BUT THE IDEA
THAT ANYBODY CAN BRING IDEAS
FORWARD, GET MENTORED AND
COACHED TO MAKE IT A SUCCESSFUL
IDEA.
SO THERE ARE RESOURCES AND
TRAINING ABOUT WHAT IS ALIGNED
WITH THE VISION AND WHAT KIND OF
PROJECTS ARE WE TRYING TO
SUPPORT.
SO IT TEACHES STRATEGIC
PLANNING.
IT TEACHES ENTREPRENEURSHIP AND
ENGAGEMENT AND BEST PRACTICES.
THOSE FOUR CATEGORIES ARE THE
POINTS OF OUR GOVERNANCE MODEL.
HOW DO WE BRING IN MENTORS AND
REVIEW SYSTEM, AND HOW DO WE
PICK AND CHOOSE AND SET
PRIORITIES AND THEN HOW DO WE
NURTURE THEM AS WE GO?
THAT'S WHAT WE ARE TRYING TO
BUILD AS A WAY WE CAN DO THAT
REGARDLESS OF WHETHER THE IDEAS
ARE COMING FROM THE LIBRARY
OPERATIONS OR FROM NCBI OR OUR
OTHER DIVISIONS.
ALL THE DIVISIONS ARE ENCOURAGED
TO LOOK FOR OPPORTUNITIES.
AND SO, AS WE ARE HOPEFUL IN
PLANNING THAT THIS WILL ALL BE
COMPLETED AS DEVELOPING THE
MANAGEMENT PRINCIPLES IN THE
NEXT COUPLE OF MONTHS.
WE HAVE A SERIES OF MEETINGS AND
RETREATS ON THE BOOKS SO BY
OCTOBER, IN SEPTEMBER THE NEXT
BOARD MEETING, WE ARE READY TO
PUT THE CALL OUT AND SAY, SUBMIT
YOUR IDEAS.
WE HAVE GOT THE SUPPORT IN PLACE
AND WE UNDERSTAND HOW WE'RE
GOING TO GATHER AND PRIORITIZE.
AND WE'RE BUILDING THE PLANE
WHILE FLYING IT BUT WHEN WE HIT
100%, WE'LL HAVE A REAL SHOWCASE
KIND OF MODEL THAT EYE WANT TO
BE ABLE TO SHOW TO OTHER
INSTITUTES AS A WAY TO
INCENTIVIZE CONTINUOUS
INNOVATION.
>> THANK YOU.
>> STEVE, MAYBE BUILDING ON
NANCY'S QUESTION, SOME OF THE
THINGS WE HAVE BEEN THINKING
ABOUT AT NORTHWESTERN ARE
COMPETENCIES.
ARE THERE -- WHAT DOES AI
LITERACY MEAN IN THE CONTEXT OF
STUDENTS AND OUR WORKFORCE?
AND WE HAVE SEEN A LOT, MANY
EXAMPLES THAT YOU HAVE SHARED
THAT HAVE JUST BEEN REALLY
OUTSTANDING THAT EMPHASIZE THIS
CULTURE OF CONTINUOUS
INNOVATION.
I AM WONDERING IF THERE HAVE
BEEN CONVERSATIONS ABOUT
COMPETENCIES OR LITERACY OF
CERTAIN KINDS OF TECHNOLOGIES OR
WAYS OF WORKING AND LEARNING
THAT HAVE BEEN PARTICULARLY
HELPFUL?
>> SO I THINK OUR PILOT PROGRAM
HAS REALLY BEEN AN INVESTMENT IN
THAT AND THAT IS SEPARATE FROM
CONTINUOUS INNOVATION.
BUT IT'S PARALLEL TO IT.
BUT IT'S DOING THINGS NOW, OUR
CONTINUOUS INNOVATION SYSTEM IS
STILL BEING BUILT BUT WE IMAGINE
SOME OF THOSE PILOT TYPES OF
WORK COULD BE PICKED UP AND
CONSIDERED INNOVATION.
I'M GOING TO ASK DIANE, BECAUSE
SHE HAS BEEN LEADING THE
PROGRAM.
>> HI, KRISTI.
JUST TO -- LET ME PUT ON MY
CAMERA.
THERE WE GO.
SO I'M GOING TO BACK THIS UP A
LITTLE BIT.
SO BACK IN 2018, WE LOST THAT --
WE LAUNCHED THE DATA SCIENCE AT
NLM TRAINING PROGRAM.
AND THAT WAS A VERY
COMPREHENSIVE PROGRAM FOR ALL
STAFF AT NLM THAT EITHER JUST
WANTED TO LEARN THE BASICS LIKE
WHAT IS THE DEFNATION OF DATA
SCIENCE AND HOW DOES IT IMPACT
MY DAILY LIFE, TO REALLY
TEACHING PEOPLE THE ESSENTIALS
OF PYTHON AND CLEANING UP DATA
TO USING IT.
AND EVEN WORKING WITH OUR STAFF
SCIENTIST THAT WANTED TO HAVE A
LITTLE BIT MORE OPPORTUNITY TO
MENTOR PROGRAMS.
SO, THAT WAS KIND OF A NICE
LITTLE BASE THAT WE ESTABLISHED
AS WE WENT INTO THE AI PILOT
PROGRAM.
AND WILL WHAT WE HAVE LEARNED IS
THAT WORKING IN THE ASIER
ENVIRONMENT IT WAS VERY HELPFUL
TOON ABLE TO DO PYTHON
PROGRAMMING IN NOTEBOOK SO THAT
WAS DEFINITELY A LEARNING
EXPERIENCE FOR US AS WELL.
AND ALSO, A BIG PIECE OF THIS
WAS SHARING AND THE
COLLABORATIVE SPIRIT.
BECAUSE WHEN EVERYONE -- WHEN
SOMEONE FIGURED OUT ONE PIECE OF
HOW TO MAKE A ALGORITHM WORK,
THEY SHARED IT WITH THE REST OF
THE GROUP.
AND SO WE DEFINITELY -- WE
BROUGHT IN EXPERTISE ACROSS OUR
COMPUTER INFORMATION TECHNOLOGY
CENTER.
IS THAT RIGHT?
CIT?
I'M TRYING TO THINK OF THE
ACRONYM -- THE FULL NAMES OF
THEM.
SO YOU HEARD WITH EVA AND ALSO
THE DEPUTY FOR CIT, AND PROVIDER
RESOURCES.
SO IT WAS A LEARNING EXPERIENCE
TO GET INTO THE ENVIRONMENT AND
THE AZUR ENVIRONMENT TO CREATE
THESE TOOLS.
BUT THEN IT WAS ALSO A VERY
COLLABORATIVE LEARNING
EXPERIENCE WHERE PEOPLE WERE
SHARING WHAT THEY HAVE DONE AND
HOW THEY CREATED ALGORITHMS AND
THE DIFFERENT METHODS THAT
EMPLOYED.
WE INCLUDED A LOT OF REAL
AUGMENTED -- WHAT DOES THE G
STAND FOR?
SORRY, IT'S NOT COMING TO MY
BRAIN.
-- TO USE OUR RESOURCES, OUR
APIs TO BUILD LARGE LANGUAGE
MODELS TO PRODUCE RESULTS AND
THE DIFFERENT KIND OF CONTENT WE
WERE TRYING TO PRODUCE.
AND ALSO SOME OF THE OUTCOMES
FROM THAT -- SOMETIMES IT'S
BETTER TO USE A DOMAIN-SPECIFIC
MODEL INSTEAD OF A BROADER ONE.
SO THAT WAS ONE OF THE OUTCOMES
AS WELL AND WE ARE CONTINUING TO
DO SOME INVESTIGATIONS IN THAT
AS WELL.
>> THANKS, DIANE.
SO, AS A CLOSING, DIANE AND CIT
COLLEAGUES HAVE DEVELOPED AN NIH
COMMUNITY OF PRACTICE FOR AI AS
WELL.
SO IT'S NOT JUST NLM.
BUT IT'S REALLY TAKEN OFF.
AND DO YOU WANT TO GO INTO THAT
NOW -- 600 PEOPLE AT NIH ARE IN
THIS TOP PROGRAM AND THEY ARE
JOINING THE CALL AND SHARING
IDEAS AND NLM IS TRYING TO SET
UP OFFICE HOURS WHERE THEY COME
IN WITH QUESTIONS ABOUT PRACTICE
OR STRATEGIES.
WE CAN SHARE OUR EXPERTISE WITH
THEM THERE TOO.
>> THAT'S WONDERFUL.
THANK YOU VERY MUCH.
ALL RIGHT, I THINK -- ARE THERE
ANY OTHER QUESTIONS?
IF NOT, I'M GOING TO MOVE ON TO
OUR NEXT AGENDA ITEM WHICH IS
THE FUTURE OF BOARD OF REGENTS
WORKING GROUPS AND THAT WILL BE
PRESENTED BY DR. DINA PALTOO.
>> GIVE ME ONE SECOND TO GET
EVERYTHING SET UP.
GOOD MORNING AND THANK YOU FOR
THE OPPORTUNITY TO COME BEFORE
YOU TODAY TO HAVE A DISCUSSION
ON THE WORKING GROUPS.
PLY MAN IS TO PROVIDE HISTORY OF
THE BOARD OF REGENTS WORKING
GROUP AND THEN WANTED TO HEAR
FROM YOU ON HOW YOU FEEL THE
GROUPS HAVE BEEN WORKING.
IF WE ARE GOING IN THE RIGHT
DIRECTION WITH SOME PROPOSED NEW
GROUPS AS WELL AS OTHER THOUGHTS
THAT YOU MAY HAVE ON HOW WE CAN
BEST FORMAT.
BUT FIRST I'D LIKE TO THANK A
NUMBER OF PEOPLE WHO HELPED GO
THROUGH THIS PROCESS ON THE NLM
LEADERSHIP TEAM.
ESPECIALLY DIANE AND KIM, AS
WELL AS THE NLM OFFICE OF
STRATEGIC INITIATIVES WITH LISA
AND KIMBERLY THOMAS AS WELL AS
CHRISTINE IRELAND, JODI NURIK
AND THERESA.
I DID WANT TO JUST BRIEFLY
MENTION A FEW ASPECTS OF THE
CHARGE TO THE NLM BOARD OF
REGENTS.
THEY ARE HERE TO ADVISE NLM,
CONSULT AND MAKE RECOMMENDATIONS
ON ACTIVITIES THAT ARE CARRIED
OUT BY NLM AND THROUGH THE NLM
AS WELL AS POLICIES RELATED TO
THOSE ACTIVITIES.
AND AS A PART OF THE BOARD OF
REGENTS, THE BOARD IS ABLE TO
HAVE SUBCOMMITTEES THAT CAN
EITHER BE STANDING OR AD-HOC AS
WELL AS WORKING GROUPS THAT CAN
HELP OVERSEE THE BOARD'S
ACTIVITIES AND NLM ACTIVITIES AS
WELL.
SO JUST TO GIVE OFF A FEW NIH
DEFINITIONS OF SUBCOMMITTEES AND
WORKING GROUPS.
NIH SEES SUBCOMMITTEES THAT ARE
CHARTERED FROM THE ADVISORY
COMMITTEE AND IN THIS CASE, IT
COULD BE THE BOARD.
AND THESE COMMITTEES ARE USED TO
DIVIDE UP WORK FLOW, LOOK AT
SPECIFIC ISSUES AND THEN PROVIDE
FEEDBACK AND ADVICE ON THAT,
REPORTING BACK TO THE STANDING
CHARTER ADVISORY COMMITTEE.
SUBCOMMITTEES CAN BE STANDING OR
AD-HOC, DEPENDING ON WHAT THE
NEED IS.
WORKING GROUPS ARE A LITTLE BIT
DIFFERENT.
THEY CAN OFTEN INVOLVE OUTSIDE
EXPERTS WHO CAN HELP PROVIDE
ADVICE.
THESE GROUPS ARE TYPICALLY
GATHERED INFORMATION, THEY
ANALYZE, THEY ARE LOOKING AT
FACTS AND INFORMATION AND THEN
THEY OFTEN REPORT THEIR FINDINGS
BACK TO THE CHARTER ADVISORY
COMMITTEE FOR FINAL
DELIBERATION.
LOOKING AT THESE TWO TYPES OF
GROUPS IN A LITTLE BIT MORE
DETAIL, MEMBERSHIP OF
SUBCOMMITTEES IS TYPICALLY
SELECTED MEMBERS OF THE
CHARTERED ADVISORY COMMITTEE, IN
THIS CASE IT WOULD BE THE BOARD.
AND WORKING GROUPS ARE SELECTED
BY THE ADVISORY COMMITTEE AND
THE FEDERAL OFFICIALS AND MAY
INCLUDE NON MEMBERS OF THAT
COMMITTEE.
SO FOR EXAMPLE, WE PREVIOUSLY
HAD CLINICALTRIALS.GOV WORKING
GROUP.
THE FUNCTIONS OF THE COMMITTEES
ARE A LITTLE BIT DIFFERENT.
SUBCOMMITTEES ARE TYPICALLY
STANDING ALTHOUGH THERE ARE SOME
THAT CAN BE AD-HOC.
AND WORKING GROUPS ARE
TEMPORARY.
THEY TYPICALLY ARE FOCUSING ON A
SPECIFIC TOPIC.
BOTH OF THE GROUPS REPORT TO THE
CHARTER ADVISORY COMMITTEE.
SUBCOMMITTEES PROVIDE GROUP
ADVICE, THE ADVICE IS COMING
FROM THE ENTIRE COMMITTEE AND
THE WORKING GROUP TYPICALLY WHAT
YOU SEE THERE IS ADVICE FROM THE
ATTENDEES BUT THEY ARE REPORTING
THEIR FINDINGS SO RECORDING THE
INFORMATION OR ANALYSIS OF WHAT
THEY FOUND FOR 30th
DELIBERATION BY THE CHARTER
ADVISORY COMMITTEE.
SUBCOMMITTEES TYPICALLY HAVE
DELIBERATIONS IN THE OPEN PUBLIC
SESSION OF THE CHARTER ADVISORY
COMMITTEE AND THEN WORKING
GROUPS DON'T HAVE THAT
REQUIREMENT, PER SE.
BUT THEIR DELIBERATIONS ARE
RECOMMENDED TO BE OPEN.
GIVING A LITTLE HISTORY OF THE
NLM BOARD WORKING GROUPS.
I THINK IT WAS 2016, 2017, THE
FIRST FOUR WORKING GROUPS WERE
ESTABLISHED TO SUPPORT THE
DEVELOPMENT AND IMPLEMENTATION
OF THE STRATEGIC PLAN OF WHICH
YOU ARE ALL VERY FAMILIAR WITH.
THE FOUR GROUPS WERE THE
RESEARCH FRONTIERS WORKING
GROUP, WHICH WAS REALLY LOOKING
TO ADVISE NLM ON RESEARCH
DIRECTIONS RELATED TO OUR
MISSION AND ALSO SOME AREAS OF
WHICH NLM MAY WISH TO INVEST IN.
PUBLIC SERVICE, WHICH WAS
ADVISING NLM ON NEW DIRECTIONS
AND OUTREACH AND ENGAGEMENT
OPPORTUNITIES FOR EXISTING OR
NEWLY-DEVELOPED PUBLIC SERVICES.
THE THIRD GROUP WAS LITERATURE
COLLECTIONS WHICH WAS DEVELOPED
TO ESTABLISH TO ADVISE ON
LITERATURE CONTENT AND PUBLIC
SERVICES COLLECTIONS AND THEN
THE FOURTH GROUP WAS STRATEGIC
PLANNING, WHICH IS ADVISING NLM
ON ASPECTS OF THE STRATEGIC PLAN
AND FORWARD-LOOKING ACTIVITIES.
MORE RECENTLY IN 2023, THE
PUBLIC SERVICES AND LITERATURE
COLLECTIONS GROUPS WERE OF
MERGED BECAUSE THEY WERE
ADVISING ON MODERNIZATION
EFFORTS FOR NLM'S BIOMEDICAL
INFORMATION SERVICES.
AND THEN IN 2024, NLM HADS BEEN
DISCUSSING POTENTIALLY
SUNSETTING AND FORMING NEW
GROUPS TO FOCUS ON THINGS WE ARE
DOING NOW, ONGOING OPERATIONS,
BIOMEDICAL INFORMATION SERVICES
THAT WE COULD REALLY USE THE
BOARD'S FEEDBACK ON.
SOME OF YOU MAY RECALL IN 2022,
BOARD OF REGENTS WORKING GROUP
ASSESSMENT WAS CONDUCTED BY THE
NLM OFFICE OF STRATEGIC
INITIATIVES.
AND THIS ASSESSMENT WAS LOOKING
AT THE PROGRESS AND STATUS OF
THE WORKING GROUPS.
THE PURPOSE OVERALL WAS TO
OBTAIN FEEDBACK FROM WORKING
GROUP MEMBERS ON BOTH THE
EFFECTIVENESS AND UTILITY OF THE
WORKING GROUPS.
REALLY TO HELP IMPROVE
OPERATIONS AND STRENGTHEN
ACTIVITIES THROUGH EVIDENCE
BUILDING EFFORTS WHICH ARE
CONSISTENT WITH THE NLM'S
STRATEGIC PLAN.
OSI, THE OFFICE OF STRATEGIC
INITIATIVES TOLD BOARD MEMBERS
AND ALSO CONDUCTED A SURVEY WITH
NLM STAFF AND THE RESULTS WERE
SUMMARIZED IN THE PURPOSE,
OUTCOMES, CHALLENGES AND
RECOMMENDATIONS TO NLM.
SO THIS IS A SUMMARY OF THAT
EVALUATION OVERALL.
EVERYONE FELT THAT HAVING THESE
WORKING GROUPS REALLY CREATES
MEANINGFUL INTERACTIONS BETWEEN
BOARD MEMBERS AND NLM STAFF AND
CREATES A COLLABORATIVE
ENVIRONMENT.
IT ALSO HELPS TO MAKE THE
EXPERIENCE OF SERVING AS A BOARD
MEMBER A LITTLE BIT MORE
ENGAGING THAN JUST HAVING BOARD
MEMBERS SITTING AROUND AND
LISTENING TO PRESENTATIONS BUT
IT REALLY GIVES THE BOARD
MEMBERS A TOPIC TO DELIBERATE
ON.
IT PROVIDES OPPORTUNITIES FOR
NLM STAFF TO HEAR FROM BOARD
MEMBERS AND LEVERAGE THEIR
EXPERTISE AND EXPERIENCE AS WELL
AS GIVES THE POTENTIAL FOR MORE
EXECUTIVENESS AND BENEFICIAL
INTERACTIONS.
-- EFFECTIVENESS.
SO UNDER SUCCESSES, THE SUMMARY
INDICATED THAT THE CONTRIBUTIONS
OF THE WORKING GROUPS LED TO
UPDATES IN THE NLM COLLECTION
AND PRESERVATION POLICY AS WELL
AS CONTRIBUTED TO MODERNIZATION
EFFORTS OF CLINICALTRIALS.GOV
AND ALSO PROVIDED IMPORTANT
EXPERTISE AND ALLOWED BOARD
MEMBERS TO SERVE AS CHAMPIONS
FOR NLM.
THERE WERE A FEW CHANNELS THAT
WERE DISCOVERED IN THIS
ASSESSMENT IN THAT THE
EXPECTATIONS OF THE BOARD
MEMBERS SERVING IN WORKING
GROUP, NEEDED A LITTLE BIT MORE
CLARIFICATION.
THERE NEEDED TO BE MORE
CLARIFICATION ON THE WHOLE OF
THE MEMBERS.
SOME OF THE WORKING GROUP
MEETINGS ALSO LACKED SPECIFICITY
OR FOCUS WITHOUT CLEARLY TOW
WHAT NLM'S PRIORITIES OR
STRATEGY WAS FOR THAT PARTICULAR
TOPIC.
AND BECAUSE BOARD MEMBERS DO
HAVE A SPECIFIC TIME THAT THEY
SERVE ON THE BOARD, SOME OF THE
TURNOVER MEMBERS CAN RESULT IN
GAPS AND DISCUSSIONS.
SO THROUGH THE POLL TO THE BOARD
MORES AND THE SURVEY, THERE WERE
SEVERAL RECOMMENDATIONS.
FIRST TO CLARIFY THE PURPOSE OF
THE WORKING GROUPINGS, SECOND TO
ENSURE THAT THE WORKING GROUP
SESSIONS HAVE CLEAR OBJECTIVES
AND THAT ARE ALIGNED WITH THE
CURRENT NLM PRIORITIES, AND THEN
ALSO TO CONSIDER CHANGING
WORKING GROUP PARTICIPANTS SO
THAT BOARD MEMBERS WOULD HAVE
THE OPPORTUNITY TO PARTICIPATE
IN DIFFERENT DISCUSSIONS WITHIN
THE WORKING GROUPS.
THE CURRENT BOARD WORKING GROUPS
INCLUDE STRATEGIC PLANNING,
RESEARCH FRONTIERS AND THEN AS I
MENTIONED PREVIOUSLY, A MERGER
OF THE PUBLIC SERVICES AND
LITERATURE COLLECTIONS GROUPS.
AND YOU CAN SEE ON THIS SLIDE
SOME OF THE ACTIVITIES THESE
GROUPS HAVE BEEN PARTICIPATING
IN.
SO ALONG WITH THE RECOMMENDATION
FROM THE ASSESSMENT, THERE IS A
NEED FOR THE GROUPS TO HAVE
CLEAR CHARGES AND UNIQUE GOALS.
AND NLM IS IN THE PROCESS OR
PROPOSING TO SUNSET THE PREVIOUS
GROUPS BUT TO ESTABLISH NEW
GROUPS BECAUSE OF THE NEW VISION
FOR NLM FROM THE NIH DIRECTOR,
AS WELL AS SOME OF THE STRATEGIC
DIRECTIONS THAT WE ARE TRYING TO
MOVE IN.
STEVE MENTIONED SOME VISIONARY
STATEMENTS IN HIS TALK FOR
FEDERATION AND SUSTAINABILITY
AND THOSE TYPES OF THINGS.
SO WE ARE LOOKING AT KEEPING THE
STRATEGIC PLANNING GROUP TO
PROVIDE THOUGHTS ON DEVELOPING
AND IMPLEMENTING THE NLM
STRATEGIC PLAN AND MONITORING
ITS PROGRESS, OPERATIONAL
EXCELLENCE, WHICH WOULD PROVIDE
THOUGHTS ON MAINTAINING THE
OPERATIONAL EXCELLENCE OF THE
CURRENT PRODUCTION SERVICES
PORTFOLIO AS WELL AS LOOKING AT
CONSIDERATIONS OF EFFICIENCY,
SCIENTIFIC VALUE AND IMPACT.
AND INNOVATIVE INITIATIVES WHICH
WILL PROVIDE THOUGHTS ON
IMPLEMENTATION OF BOLD NEW
ACTIVITIES AND PROGRAMS.
SO LOOKING AHEAD, SHOULD NLM
CONSIDER ADDITIONAL OR DIFFERENT
GROUPS?
WE WANT TO HEAR FROM YOU AS TO
YOUR THOUGHTS ON THESE RECURRENT
GROUPS THAT WE ARE PROPOSING,
AND HOW SHOULD IMPORTANT TOPICS
BE DISCUSSED AND REPORTED OR
ADVISED UPON IF WE HAVE CERTAIN
TOPICS, FOR EXAMPLE, LIKE THE
SEQUENCE FREE ARCHIVE, SRA, AND
OTHER OPERATIONAL ACTIVITIES?
HOW SHOULD WE BRING THOSE TOPICS
FORWARD TO THE BOARD FOR
DISCUSSION?
IF IT'S NOT A PART OF A STANDING
WORKING GROUP DISCUSSION?
SO ONCE AGAIN, I WANTED TO
REMIND YOU ALL OF THE TWO GROUPS
THAT WE SPOKE ABOUT EARLIER
BASED ON THE NIH DEFINITIONS OF
A SUBCOMMITTEE AND WORKING GROUP
BUT ALSO WANTED TO BRING UP OR
INCLUDE A DISCUSSION OR
BREAKOUT-GROUP.
OUR WORKING GROUPS HAVE BEEN
FUNCTIONING A LITTLE BIT
DIFFERENT THAN STANDARD NIH
DEFINITION OF A WORKING GROUP.
WE HAVE BEEN FUNCTIONING MORE
LIKE A DISCUSSION OR
BREAKOUT-GROUP.
SO I DID WANT TO BRING THAT UP
AS WELL.
BUT A DISCUSSION OR
BREAKOUT-GROUP SHOULD INCLUDE
BOARD MEMBERS AND STAFF.
THEY COULD BE ONGOING AND TOPIC
FOCUSED.
OF COURSE THEY WOULD REPORT AS
THE OTHER GROUPS WOULD TO THE
CHARTER ADVISORY COMMITTEE OR
THE FEDERAL OFFICIAL.
THEY WOULD PROVIDE THE ADVICE OF
ATTENDEES AND REPORT ON THEIR
DISCUSSIONS.
DISCUSSION SUMMARY TO REPORT
OUTS AND THESE TYPES OF BREAKOUT
GROUPS COULD HAVE THEIR
DISCUSSIONS OUTSIDE OF THE
PUBLIC SESSION BUT THEN THEY ARE
REPORTING WOULD BE TO -- WOULD
BE AT THE PUBLIC SESSION.
SO WE WANTED TO BRING FORWARD TO
YOU FOR DISCUSSION, A FEW
QUESTIONS THAT WE WOULD LIKE FOR
YOU TO CHIME IN ON.
FIRST IS THE ROLE OF THE GROUPS.
I'M NOT CALLING THEM WORKING
GROUPS HERE BECAUSE WE MAY NEED
TO CHANGE THE TITLE OF THEM TO A
SUBCOMMITTEE OR SOMETHING LIKE
THAT.
BUT ARE THE GROUPS NEEDED?
WHEN AND HOW SHOULD THE GROUPS
BE USED?
SHOULD THEY BE ONGOING LIKE AN
ONGOING SUBCOMMITTEE IN AN
AD-HOC WORKING GROUP?
SHOULD THEY BE FOR A SPECIFIC
TOPIC?
SHOULD THEY BE CONSISTENT WITH
THE THREE GROUPS THAT WE'RE
PROPOSING?
SHOULD THEY HAVE DELIBERATIONS
OUTSIDE OF A REGULAR BOARD
MEETING AND THEN JUST REPORT
BACK?
SHOULD THERE INSTEAD BE A FOCUS
ON DISCUSSION TOPIC AT EACH
BOARD MEETING?
WE RUN INTO AN ISSUE BECAUSE OUR
BOARD OF REGENTS DOES NOT HAVE
HUGE NUMBER OF MEMBERS THAT IF
WE START BREAKING IT DOWN INTO
VARIOUS GROUPS, WE HAVE ONLY A
FEW MEMBERS ON EACH GROUP, WHICH
DOESN'T ALLOW FOR ALL THE BOARD
MEMBERS TO PARTICIPATE IN THE
DISCUSSION.
SO SHOULD, INSTEAD OF HAVING
BREAKOUT GROUPS THAT THEN REPORT
BACK, SHOULD WE JUST HAVE ONE
DISCUSSION TOPIC THAT ALLOWS FOR
STRATEGIC INSIGHT FROM THE
ENTIRE BOARD MEETING AT A
MEETING?
IF WE DO CONTINUE WITH THE
GROUPS, ARE THE PROPOSED NEW
GROUPS THE RIGHT ONES?
WE MENTIONED STRATEGIC PLANNING,
OPERATIONAL EXCELLENCE AND
INNOVATIVE INITIATIVES.
HOW COULD THE GROUPS BE MORE
EFFECTIVE AND THEN WHAT KINDS OF
GROUPS SHOULD THEY BE?
SHOULD THEY BE SUBCOMMITTEES,
WORKING GROUPS OR DISCUSSION
BREAKOUT GROUPS?
AND I DID WANT TO POINT OUT ONCE
AGAIN THAT IF WE DO GO WITH THE
SUBCOMMITTEE OR WORKING GROUP,
THAT THE DELIBERATIONS OF THESE
GROUPS SHOULD BE PUBLIC WHICH IS
CONSISTENT WITH THE COMMITTEE
POLICY.
SO I WILL LEAVE THIS SLIDE HERE
AND WOULD APPRECIATE HEARING
FROM ALL OF YOU.
STEVE, I DON'T KNOW IF YOU WANT
TO ADD IN ANYTHING OR BOARD
MEMBERS CHIME IN, BUT WE DID
WANT TO HEAR FROM YOU.
WE HAVE A LOT OF TRANSITION AND
CHANGE AT NLM AND WE APPRECIATE
ALL OF YOUR INSIGHT AND
DIRECTIONS AND EXPERTISE.
THANK YOU.
>> THANK YOU, DINA.
I THINK THE ONLY THING I OFFER
AGAIN IS THAT THE GROUPS ALSO
SERVE THE BOARD AND HELP THE
BOARD DO ITS WORK.
SO ALTHOUGH WE HAVE IDEAS IN HOW
THEY COULD HELP US, WE ARE ALSO
LOOKING FORWARD TO WAYS THEY CAN
HELP YOU DO YOUR WORK AS WELL.
WHAT REGULARSINATED STRONGLY
WITH ME, OUR BOARD IS SO SMALL
WHEN WE SUBDIVIDE IT, IS THAT
HELPFUL?
BECAUSE THAT MEANS THERE ARE
ONLY ONE OR TWO MEMBERS.
AND YOU GET THAT SYNERGY AND
THAT STIMULATION THROUGH
CONVERSATION AND IDEA MAKING
WITH THE GROUPS ARE LARGER.
THAT'S PARTS OF WHY WE ARE
TRYING TO SEE IF THERE IS A
SENSIBLE WAY TO DRINK THE NUMBER
THAT IS STILL DOING THE RIGHT
WORK -- SHRINK -- SO MAYBE I'LL
SHUT UP AND PASS IT TO KRISTI TO
SEE YOUR THOUGHTS OR THE BOARD'S
THOUGHTS ABOUT WHETHER THE
PARTITIONING IS RIGHT.
AND IT'S NOT ON THIS SLIDE WHAT
YOU PROPOSED BUT IT WAS
OPERATIONAL EXCELLENCE AND
INNOVATION.
>> STRATEGIC PLANNING,
OPERATIONAL EXCELLENCE AND
INNOVATIVE INITIATIVES.
>> INNOVATIVE INITIATIVES.
>> I CAN GO BACK TO THAT SLIDE,
TOO.
>> COULD YOU PLEASE --
>> WONDERFUL.
THANK YOU VERY MUCH.
AND I REALLY APPRECIATE THE
THOUGHTFUL CONTEMPLATION ABOUT
THE ROLE THAT THE BOARD OF
REGENTS PLAYS AND MECHANISMS
THAT WE CAN HELP TO SUPPORT SO
THAT NOT ONLY IS THERE A GOOD
UNDERSTANDING OF WHAT IS
HAPPENING AT NLM AND WE'RE
HEARING THAT AND UNDERSTANDING
IT, BUT ALSO SO YOU CAN GET WHAT
YOU NEED FROM US.
I THINK THAT IS A CRITICAL PIECE
OF THIS PUZZLE.
AND SO, I WOULD LOVE TO SAY THAT
I HAVE SOME SORT OF LIKE,
PERFECT SOLUTION HERE BUT I
THINK WHAT IT'S REALLY GOING TO
TAKE IS WORKING THROUGH SOME OF
THE OPPORTUNITIES AND CHALLENGES
WITH THE DIFFERENT STRUCTURES
THAT ARE -- THAT HAVE EITHER
EXISTED OR ARE BEING PROPOSED.
MY FIRST QUESTION ACTUALLY
RELATES TO STRATEGIC PLANNING.
SO THE STRATEGIC PLANNING
WORKING GROUP.
I KNOW THAT THE CURRENT
STRATEGIC PLAN FROM NLM RUNS TO
2027.
AND SO, I'M WONDERING HOWL YOU
ENVISION STRATEGIC PLANNING, THE
ACTUAL ACTIVE STRATEGIC
PLANNING, PLAYING INTO THE WORK
OF THIS GROUP AND WHAT THE
TIMELINE WOULD BE?
IS THAT SOMETHING THAT WE WOULD
BEGIN DISCUSSING IMMEDIATELY?
>> SO I THINK IT'S GOING TO
PROBABLY BE ONE OF THE FIRST
TOPICS OR PRIORITY AGENDA ITEMS
FOR THE NEW PERMANENT DIRECTOR.
AND NLM -- NIH, THAT POSITION
SEARCH IS OPEN NOW.
IT WILL GO -- IT CLOSES IN JULY.
THE DIRECTOR OF NIH IS THAT SHE
WANTED TO IDENTIFY A LEAD
CANDIDATE THROUGH SUMMER.
AND SO, I WOULD EXPECT THAT BY
OUR NEXT MEETING OR SHORTLY
THEREAFTER, THERE WILL BE A NEW
PERMANENT DIRECTOR TO HELP
SHEPHERD THE STRATEGIC PLANNING
WORK.
AND I THINK MY
ANTICIPATION, - I'M NOT IN THE
ROLE AND I'M JUST SAYING, WHAT
I'M TRYING TO DO TO PREPARE THAT
NEW OFFICER, WHOMEVER IT MAY BE,
FOR QUICK EXECUTION TO START
PLANNING.
BECAUSE I THINK WE HAVE TO --
THERE IS A YEAR AND A HALF OF
WORK BEFORE YOU GET THE -- WE
HAVE TO DO THE PLANNING IN 25
AND 26 SO IT IS READY TO REPLACE
IN 27.
>> ABSOLUTELY.
THANK YOU VERY MUCH.
MITCH, I SEE YOUR HAND UP.
>> YES, SO I WANTED TO SUGGEST
AT LEAST FOR THE TIME BEING,
THAT WE NOT BREAK INTO GROUPS
FOR THE REASONS THAT YOU'VE
STATED ABOUT THE NUMBER OF
COMMITTEE MEMBERS THERE ARE.
IT JUST SEEMS -- THERE IS A
CERTAIN AMOUNT OF LOSS OF ENERGY
AND VITALITY WHEN YOU'RE JUST
LIKE TWO.
AND ALSO, IT ISN'T REALLY THAT
TIME SAVING BECAUSE WHAT WE WIND
UP DOING IS THEN WE TAKE A
CERTAIN AMOUNT OF TIME TO BREAK
INTO GROUPS AND THEN WE HAVE TO
REENERGIZE AROUND THE GROUP AND
THEN WE REPORT OUT TO THE WHOLE
GROUP AND THEN -- I KNOW THAT
THERE ARE TOPICS THAT I CAN BE
SAYING MORE HELPFUL ON AND
OTHERS THAN PROBABLY SOMEONE
LIKE ME DOES BETTER STRATEGIC
THAN OPERATIONAL.
BUT I ENJOY HEARING ABOUT THE
OPERATIONAL.
I LEARN STUFF.
SO YES, I MIGHT NOT BE ABLE TO
CONTRIBUTE AS MUCH, BUT I STILL
FIND IT USEFUL AND INTERESTING.
AND SO, I WOULD SAY THAT AT
LEAST FOR THE TIME BEING, WITH
ALL OF THESE DIFFERENT CHANGES
AHEAD, IT WOULD MAKE SENSE TO
TRY TO BE ONE GROUP FOR NOW, AND
MAYBE IN THE FUTURE, THERE WILL
BE A REALLY PRESSING THING WHERE
THERE IS A BIG TIME COMMITMENT
AND YOU WANT PEOPLE WHO REALLY
KNOW THAT AREA.
THAT WOULD BE MY SUGGESTION.
>> GREAT, THANK YOU.
>> THANK YOU.
LOLA?
>> I WOULD AGREE WITH WHAT WAS
JUST SAID.
I SERVED ON -- I FORGOTTEN WHAT
IT WAS CALLED BUT ESSENTIALLY IT
WAS THE CLINICALTRIALS.GOV
MODERNIZATION.
AND BEING ABLE TO ATTEND
MEETINGS THAT WERE SPECIFIC TO
THAT, THAT WOULD FALL UNDER
OPERATION ALEX SILENCE.
IT ALLOWS US TO DO A LOT OF WORK
AND GET MORE INSIGHT HOW THE NLM
APPROACHES -- OPERATIONAL,
EXCELLENCE.
AND THEN REPORT BACK TO THE
BOARD.
THAT WOULD BE MORE OF A
DISCUSSION BREAKOUT RATHER THAN
A WORKING GROUP.
THE SPIRIT WAS MORE LIKE A
DISCUSSION BREAKOUT.
AND VERY SPECIFIC AND TIME
LIMITED.
AND SO, YOU DON'T NEED A
PERMANENT WORKING GROUP FOR
THINGS LIKE THAT.
SO, AS THE NLM NEEDS AND THE
BOARD NEEDS TO GIVE ADVICE, YOU
HAVE THESE SORT OF BREAKOUT
DISCUSSION GROUPS.
PEOPLE WHO ARE INTERESTED AND
HAVE EXPERTISE AND CAN REPORT
BACK TO THE BOARD.
BUT YOU DON'T MAKE THAT ANY
PERMANENT SEPARATE THING.
>> NANCY?
>> THANK YOU.
PIGGING BACKING ON THAT, I FEEL
LIKE PROBABLY FOCUSED DISCUSSION
OR BREAKOUT GROUPS IS WHAT CAN
BE MOST USEFUL IN TERMS OF
COALESCING AROUND SPECIFIC TOPIC
THAT COULD BENEFIT FROM INPUT OF
THE BOARD.
THERE ARE A COUPLE OF THINGS
AROUND THAT THAT I THINK WOULD
BE IMPORTANT.
I THINK ONE SHOT, ONE TIME
DISCUSSIONS ARE ALWAYS AS
PRODUCTIVE AS SOMETHING THAT
PERSISTS FOR MAYBE A COUPLE OF
SESSIONS.
IT DOESN'T HAVE TO BE FOR A LONG
DURATION BUT FOR A COUPLE OF
SESSIONS WHERE PEOPLE CAN THINK
ABOUT WHAT WAS DISCUSSED,
FOLLOW-UP ON IT AND COME BACK TO
IT.
SO I WOULD NOT NECESSARILY WANT
THOSE TO JUST BE A DISCUSSION
BREAKOUT OR ONE MEETING ON A
TOPIC.
BECAUSE IT MIGHT BE HELPFUL TO
TALK ABOUT IT A BIT MORE.
I ALSO THINK THAT TO THE EXTENT
THAT THAT CAN BE DONE WITHIN THE
FRAMEWORK OF THE BOARD MEETING,
THAT MIGHT BE HELPFUL ONLY
BECAUSE IT'S HARD TO COORDINATE
LOTS OF SCHEDULES AND OTHER
TIMES.
NOT IMPOSSIBLE JUST ANOTHER
CHALLENGE.
AND SO IT WOULD BE NICE IF IT
COULD BE PIGGYBACKED ON TO THE
BOARD MEETING, WHETHER A
SEPARATE, IF IT NEEDS TO BE
SEPARATE FROM THE BOARD MEETING,
AT LEAST ATTACHED TO IT SO IN
THAT CLUSTER OF TIME THAT IS
ALREADY RESERVED.
THE OTHER THING THAT I THOUGHT
WOULD BE PARTICULARLY IMPORTANT
AND I PARTICIPATED IN A COUPLE
OF WORKGROUPS THAT FUNCTIONED A
LITTLE BIT DIFFERENTLY.
ONE WOULD BE -- IT'S AROUND THAT
EXPECTATION OF WHAT THE
WORKGROUPS PRODUCE.
AND I THINK THAT IT WOULD BE
VERY HELPFUL FOR THERE TO BE
VERY CLEAR DESCRIPTION OF WHAT
THE GOAL OF THE DISCUSSION OR
GROUP SESSION IS, SPECIFICALLY
AND WHAT THE OUTPUT DESIRED IS.
SO FOR EXAMPLE, IT MIGHT BE WHAT
WE'D LIKE TO GET OUT OF THIS
DISCUSSION, WHETHER IT'S JUST
TODAY'S MEETING OR THE NEXT TWO
MEETINGS, IS THE RECOMMENDATION
REGARDING X?
MAYBE SPECIFIC ABOUT THAT X.
OR, HELP WITH DIRECTION SETTING
ABOUT Y.
AND BEING SPECIFIC ABOUT THAT.
THAT HELPS SHAPE THE DISCUSSION
AND ALLOWS PEOPLE TO BRING THEIR
VARIOUS EXPERTISE AND
EXPERIENCES TO THAT SPECIFIC
PATH.
AND THE LAST THING I WOULD ASK
OR SUGGEST IS THAT, PROVIDING
THAT SPECIFIC TOPIC OR OUTCOME
OR OUTPUT DESIRED TO THE BOARD
MEMBERS AHEAD OF TIME, SO THAT
THEY CAN EITHER GIVE THAT SOME
THOUGHT AHEAD OF TIME COMING
PREPARED WITH SO MANY IDEAS
TOWARDS THAT DISCUSSION, OR EVEN
IN SOME CASES COLLABORATING WITH
OTHERS THEY KNOW TO TALK ABOUT
SOME IDEAS AND WHETHER THAT
SEEMS LIKE IT WOULD MAKE SENSE.
I THINK IT COULD LEAD TO MORE
PRODUCTIVE DISCUSSIONS.
THANK YOU.
>> THANKS NANCY.
PHILIP I SEE YOUR HAND IS UP.
>> YES, I TOTALLY AGREE.
THE CROSS-POLLINATION ASPECT OF
IT.
I'M A LITTLE WORKING GROUP
ENVIED MYSELF SOMETIMES.
BUT I'M ALSO THINKING
LOGISTICALLY, DEPENDS UPON THE
TOPIC OR THE ISSUE, INITIATIVE,
ET CETERA, OF HOW TO TAKE BETTER
ADVANTAGE OF OUR IN-PERSON TIME
SINCE WE HAVE THAT DAY AND A
HALF AS OPPOSED TO THE VIRTUAL
WHERE WE ARE ONLY HERE FOR 6 OR
7 HOURS, 6 HOURS?
SO SOMEHOW SOME WAY, LOOKING AT
THE PRIORITY AND THE NEED AND
MAYBE THAT NEEDS TO BOUNCE OFF
THROUGH THE BOARD, THROUGH AN
E-MAIL OR SOMETHING LIKE THAT,
JUST TO GET A SENSE OF WHERE
DOES THAT FIT BETTER IN PERSON,
VITTUAL.
BECAUSE IF WE CAN BRING MORE
PEOPLE IN AND HAVE MORE ROBUST
DISCUSSION AS OPPOSED TO BEING
PRESSED FOR TIME FOR 30-45
MINUTES, HAVING TO REENERGIZE
AND WE HAVE TORRET OUT AND -- I
MEAN THAT JUST TAKES A LOT OF
TIME AND ENERGY AS WELL.
I DON'T KNOW IF -- MAYBE NOT
EACH YEAR BUT MAYBE EVERY SO
YEAR, MAYBE WE DO NEED TO BRING
BACK A IN-PERSON.
JUST DEPENDS UPON WHETHER THE
STRATEGIC PLAN IS GOING AND
WHERE THE PRIORITIES ARE GOING.
SO JUST TRYING TO KIND OF FIGURE
OUT HOW TO BRING ABOUT MORE
VALUE TO THE IN-PERSON WITH THE
FUTURE OF NLM.
>> THANKS, PHILIP.
I APPRECIATE YOUR COMMENT.
I THINK JUST TO REFLECT UPON IT,
IT IS -- THERE IS A TERRIFIC
COLLECTION OF PEOPLE WHO ARE IN
THIS ROLE SERVING THE NATIONAL
LIBRARY OF MEDICINE.
BUT REFLECTING ON OUR
CONVERSATIONS, IT FEELS LIKE
PERHAPS WE'RE ABLE TO DIG IN, IN
A DIFFERENT WAY BECAUSE WE ARE
CONNECTING IN PERSON.
AND SO WHILE THAT'S NOT
SOMETHING THAT CAN HAPPEN ALL
THE TIME, I HAVE NOTICED MYSELF
THAT IT'S EASIER TO CONNECT AND
GET THAT SYNERGY HAPPENING WHEN
WE ARE ABLE TO CONNECT.
I DON'T KNOW IF THAT IS AN
IN-PERSON THING OR JUST AN
EXTENDED AMOUNT OF TIME.
SO I'M THINKING LIKE MAYBE THERE
ARE OTHER WAYS FOR US TO CONNECT
ASYNCHRONOUSLY OR SOMETHING
ALONG THOSE LINES WOULD BE VERY
HELPFUL.
I ALSO APPRECIATED NANCY'S
COMMENTS ABOUT INFORMING THE
BOARD HOW WE CAN COME TO THE
MEETING AND BEST SERVE YOUR
GOALS.
SO ARE THERE THINGS WE CAN DO TO
PREPARE?
WE CERTAINLY ARE WELL PREPARED
WITH THE BOARD BOOK AND ALL OF
THAT AND READY FOR THE
DISCUSSIONS, BUT IS THERE WORK
WE CAN DO?
ARE THERE OTHER THINGS WE CAN
REFLECT UPON FOR THESE TYPES OF
DISCUSSIONS?
SO, I'M VERY MUCH ENCOURAGE NLM
TO TASK US WITH SPECIFIC, AND
BECAUSE WE'RE ALL VERY MOTIVATED
TO DO OUR VERY BEST FOR THE NLM.
SO PLEASE DON'T HOLD BACK.
AND I SEE STEVE HAS HIS HAND UP
SO I'LL STOP AND PASS THE
VIRTUAL MIC OVER.
>> THANK YOU, KRISTI.
I THINK THAT IS A GREAT
OPPORTUNITY AND I JUST WANTED TO
POINT OUT ONE OF THE THINGS I
WAS MANAGING IN THE OPERATIONAL
EXCELLENCE CATEGORY, HOWEVER, WE
THINK ABOUT IT, AS A UNIT OF
WORK WITH INVOLVING THE BOARD
NOW.
IS A HISTORICAL OVERSIGHT
PERFORMED BY OUR BOARD OF
SCIENTIFIC COUNCILORS IN THE
PAST, WHICH HAD AND DRIFTED INTO
OVERSIGHT OF OUR PRODUCTION AND
SERVICES.
BECAUSE THEY ARE SO CLOSELY
CONNECTED TO RESEARCH DATA.
WE DON'T HAVE THAT OVERLAP
ANYMORE.
WE CLEARLY SEPARATED THE BOARD
OF SCIENTIFIC COUNCILORS IS THE
OVERSIGHT BODY FOR OUR
INTRAMURAL RESEARCH PROGRAM
WHICH THE SCIENTIFIC DIRECTOR
MANAGES THAT.
THE PRODUCTION SERVICES, THE
PUBMED, MEDLINE, THE COLLECTION,
GEN BANK, ARE ALL OPERATIONAL
SERVICES THAT ALSO NOW ARE
FACING CHALLENGES OF MATURITY,
CHALLENGE LESS OF
SUSTAINABILITY, CHALLENGES OF --
HOW DO WE WEIGH THEM AGAINST NEW
OPPORTUNITIES?
IS IT STILL THE RIGHT BEST
BUSINESS FOR THE LIBRARY TOW DO?
SO PART OF OPERATIONAL
EXCELLENCE WE'RE MANAGING IS
TRYING TO BRING FORWARD SOME
SCHEDULE FRAMEWORK OF REVIEW OF
THESE SERVICES.
I THINK THIS IS WHERE WE COULD
LOOK AT IMPACT MEASURES.
WE COULD BE LOOKING AT BUDGET
COSTS.
WE COULD BE LOOKING OR THINKING
ABOUT SCIENTIFIC OPPORTUNITIES.
HOW DO WE REFRESH?
THERE IS A WHOLE LIFE CYCLE
AROUND DATA RESOURCES WHERE THEY
GROW.
THEY HIT MATURITIY AND AT SOME
POINT, YOU HAVE TO DECIDE, DO I
REINVESTOR DO WE SUNSET?
I'M TRYING TO FIGURE OUT HOW TO
BRING THAT KIND OF DECISION THAT
WE FACE, OPERATIONAL, TO THE
BOARD FOR YOUR PERSPECTIVES.
IT'S NOT IN THAT KIND OF CONTEXT
AND GUIDANCE THAT THEY THINK
WOULD BE HANDLED IN A VARIETY OF
WAYS.
IT DOESN'T HAVE TO BE A STANDING
BODY THAT DOES WORK AT EVERY
BOARD MEETING BULL THERE ARE A
LOT OF SERVICES.
THERE IS A LOT OF SERVICES.
EITHER WE FIGURE OUT SOME
MULTI-YEAR SCHEDULE NOW OR WE
ARE GOING TO -- OR WHEN IT WILL
GET REVIEWED AND THAT WAY WE CAN
GIVE YOU THE SPECIFICITY NANCY
BROUGHT UP.
LIKE WHAT DO YOU WANT US TO
THINK ABOUT?
WE COULD BE PREPARED?
BUT WE NEED TO T THAT UP AND IF
IT'S NOT IN A AD-HOC WAY WORKING
GROUP, WE CAN THINK ABOUT HOW TO
MAYBE DISTRIBUTE IT ACROSS THE
THREE SETS OF MEETINGS.
MAYBE WE THINK ABOUT ADDING SOME
MORE TIME TO THE MAIN MEETING.
I GUESS I'M JUST PUTTING IT UP
THERE.
THAT'S A NEW THING WE MIGHT BE
BRINGING TO THE BOARD THAT THE
BOSS DID IN THE PAST.
CLINICAL TRIALS IS KIND OF A
OPERATIONAL LONG TERM VERSION OF
THAT, BUT THERE COULD BE A MORE
LIKE EVERY FOUR YEARS KIND OF
QUADRENNIAL REVIEW OF A PROGRAM.
WHAT DID WE ACCOMPLISH?
HOW MUCH DOES IT COST?
WHERE ARE THE OPPORTUNITIES?
THAT'S WHERE I'M THINKING ABOUT,
SOMETHING ALONG THOSE LINES.
AND I'LL HUSH.
>> THANK YOU VERY MUCH, STEVE
FOR THAT.
NANCY?
>> STEVE, I HAVE A QUESTION FOR
YOU.
AS YOU THINK ABOUT THAT, ARE YOU
THINKING ABOUT ANY SPECIFIC
SERVICES AND PROGRAMS AND ASKING
FOR THE BOARD'S RECOMMENDATION
ON THOSE?
OR ARE YOU ASKING OR MAYBE BOTH,
OR ARE YOU ASKING FOR THE BOARD
TO BRING EXPERIENCES AND
PERSPECTIVE ON HOW DECISIONS ARE
MADE IN OTHER VENUES WHEN THERE
ARE THOSE TYPES OF CHALLENGESES?
SO I THINK THAT ONE OF THE
THINGS THAT HAS BEEN HELPFUL TO
ME OVER THE YEARS IS HEARING HOW
FOLKS FROM OTHER PERSPECTIVES
AND OTHER TYPES OF ORGANIZATIONS
WEIGH DIFFERENT SORT OF FACTORS
AND PARAMETERS WHEN THEY NEED TO
MAKE A DECISION.
HAVE THEY THOUGHT ABOUT THE
VARIOUS TYPES OF FACTORS THAT
MIGHT BE RELEVANT THAT DECISION,
RATHER THAN TELLING ME WHAT MY
DECISION SHOULD BE?
>> FAIR ENOUGH.
I THINK WHAT I AM MANAGING IS,
IT'S A MIXTURE OF BOTH.
I THINK THAT SOME PART OF IT IS,
WE DO WANT TO DO TRANSPARENT
UPDATE AND PART OF THE -- THIS
IS AN OPPORTUNITY FOR US AS NLM
TO SHARE PUBLICLY THROUGH THE
BOARD, WHERE OUR SERVICES, HOW
THEY ARE PERFORMING, WHAT ARE
THEY DOING, WHAT THE
REQUIREMENTS ARE.
WE DON'T GET MANY OPPORTUNITIES
IN PRODUCTION TO DO THAT.
BUT WE COULD ALSO HAVE A SECTION
ABOUT CHALLENGES AND
OPPORTUNITIES WHERE DECISIONS DO
NEED TO BE MADE AND THEN THAT'S
WHERE WE COULD LISTEN AND GET
THE WISDOM OF THE BOARD AND
OTHER BRAINS.
WE COULD MAYBE PROPOSE SOME
CRITERIA BUT THAT'S JUST OUR
THINKING.
YOU COULD OFFER ALTERNATIVES AND
I DON'T THINK WE ARE BRINGING IN
ANYTHING -- IT'S NOT LIKE A
BLOCK.
WE ARE TRYING TO BRING IN
SOMETHING THAT IS DELIBERATIVE
TO THE GROUP.
THERE MIGHT BE A -- I THINK IT
DEPENDS ON THE RESOURCE.
HONESTLY EVERYTHING IS DIFFERENT
WHEN YOU GET INTO THE WEEDS.
>> SOMETHING STRUCK ME EARLIER
THAT IS RELATED TO THIS WHEN YOU
WERE PROVIDING UPDATES AND
SUMMARY, WHICH WAS YOU PROVIDED
SUCH A GOOD UPDATE ON ALL THE
PROGRESS THAT HAS BEEN MADE.
BUT ONE OF THE THINGS THAT I
WOULD LIKE TO HEAR IS, WHERE ARE
THE -- WHERE ARE YOU SEEING
CHALLENGES WHERE YOU'RE NOT
MAKING THE PROGRESS THAT YOU
HOPE TO BE MAKING?
AND HOW CAN WE HELP THINK ABOUT
STRATEGIES THAT MIGHT BE AN
ATTRACTION OR MAYBE THAT'S ONE
OF THE AREAS THAT DESERVES SOME
FOLLOW-UP DISCUSSION.
SO IT'S GREAT TO HIGHLIGHT
SUCCESSES.
WE ALL LIKE TO DO THAT AND IT'S
IMPORTANT TO DO THAT BUT ALSO I
THINK IT'S IMPORTANT TO SAY HERE
ARE SOME OF THE AREAS WHERE WE
ARE SEEING CHALLENGES.
>> THANK YOU.
THAT'S HELPFUL.
THANK YOU.
AND I'LL DO THAT FOR THE NEXT
UPDATE.
*6.
>> DINA AND STEVE, I HAVE A
QUESTION ABOUT THE THREE NEW
GROUPS.
AND OBSERVE OR ASSUME THAT THERE
WILL LIKELY BE INTERPLAY ACROSS
THESE DIFFERENT GROUPS.
THEY ARE INTERRELATED, AS MUCH
OF THE WORK OF NLM SPANS ACROSS
ALL OF THE DIFFERENT UNITS.
AND I'M WONDERING IF YOU COULD
SHARE WAYS THAT YOU THOUGHT
ABOUT CROSS-POLLINATION BETWEEN
THESE INDIVIDUAL GROUPS OR ARE
THERE OPPORTUNITIES FOR THE
GROUPS TO WORK TOGETHER PERHAPS
ON A SPECIFIC TASK?
>> I'LL CHIME IN AND SAY I THINK
THERE IS DEFINITELY
OPPORTUNITIES FOR
CROSS-POLLINATION AND FOR THE
GROUPS TO WORK TOGETHER AND
WHERE THERE MAY BE OVERLAP.
WE WANTED TO HEAR FROM YOU TODAY
TO SEE IF WE WERE GOING TO MOVE
FORWARD OR DETERMINE HOW WE WILL
MOVE FORWARD IN HAVING SEPARATE
GROUPS OR JUST GOING TO HAVE
TOPICS THAT ARE BENT UNDER THESE
CATEGORIES, IF EVERYTHING WILL
END UP COMING TO THE BOARD AND
WON'T BE A SEPARATE GROUP.
WE'LL STILL NEED TO DELIBERATE
ON THAT AFTER THIS MEETING.
BUT I DEFINITELY THINK THERE
WILL BE SOME TOPICS THAT CAN
SPAN ALL OF THESE.
>> THANK YOU.
>> AND I WOULD ALSO OFFER THAT
THERE IS A PROGRAM OR AGENDA IS
FLEXIBLE.
AND IS TO MEET THE NEEDS OF THE
BOARD AND THE WORK OF THE NLM.
SO, IF IT'S SOMETHING THAT THE
GROUP AS A WHOLE WOULD LIKE TO
KIND OF DISCUSS ALL THREE OF
THESE CATEGORIES, THAT COULD BE
PROGRAMMED AS WELL.
AND WE COULD BRING UP THE TOPICS
AND WE JUST WORK THROUGH THE
AGENDA AND DO THEM.
I LIKE -- FIRSTLY, I LIKE THAT
IT BRINGS EVERYONE'S THINKING TO
ALL OF THE TOPICS AND IT
SERIALIZES THE PROCESS.
WE DON'T HAVE TO DO THINGS IN
PARALLEL AND IT MAKES IT
TRANSPARENT.
WE CAN KEEP IT PUBLIC AND JUST
BROADCAST THE WHOLE THING.
SO WE ARE SATISFYING ALL OF OUR
POLICY EXPECTATIONS FOR PUBLIC
ENGAGEMENT AND ACCOUNTABILITY.
SO THAT HAS A REAL APPEAL TO ME
THAT IT'S SIMPLE.
BUT IT DOES -- WE HAVE TO
RESTRICT MAYBE HOW MUCH -- HOW
MUCH WE CAN FIT INTO EACH OF THE
TIME SLOTS.
SO WE WOULD HAVE TO BE
JUDICIOUS.
I DON'T WANT TO PRE SUPPOSE THAT
WORK.
>> AND MOVING FORWARD IS AS I
SAID, DEPENDING ON WHAT ADVICE
IS AND HOW WE END UP
DELIBERATING AND MAKING A
DECISION.
THESE GROUPS OR WORKING GROUPS
OR STANDING SUBCOMMITTEES OF THE
BOARD OF RENALLENTS AND THEN OUR
WORKING GROUPS COULD THEN BOARD
OF REGENTS -- WORKING GROUPS
COULD BE ON A SPECIFIC TOPIC
WITH A FOCUS ON WHATEVER WE NEED
THE HELP AND WORK THERE.
JUST A THOUGHT.
>> SO I WASN'T REAL PARTICULAR
IN MY COMMENTS OR SPECIFIC
EARLIER ABOUT THE NIH
PRIORITIES.
BUT NLM IS BEING ASKED TO BE A
THOUGHT LEADER FOR NIH AROUND
THE TOPIC OF SUSTAINABILITY OF
BIOMEDICAL DATA ASSETS AND AS
EVERYTHING GROWS AND AS
INFRASTRUCTURE AND BIOMEDICINE
JUST EXPLODES WITH DATA AND
INTERCONNECTIVITY, I THINK THERE
IS CHOICES THAT HAVE TO BE MADE
ON FLAT BUDGETS BECAUSE THE DATA
IS GROWING FASTER THAN THE
ABILITY.
WE HAVE TO STORE IT, PROGRAM IT
OR DISTRIBUTE IT.
WHERE IS THE RIGHT INVESTMENTS
TO MAKE WITH OUR PRECIOUS
LIMITED PUBLIC RESOURCES?
WHERE IMPACT AND VALUE ARE.
IT IS CHANGING INCREDIBLY AND I
CAN'T OVER EMPHASIZE HOW FAST
THE TECHNOLOGY IS MOVING US INTO
MANAGING CHARACTERIZING, THINGS
THAT ARE EXPLODING SCALE NOT BY
A FACTOR EVER 10 BUT FACTORS OF
10,000.
LIKE SINGLING CELL SEQUENCING.
LOOK AT THESE EXPERIMENTS AND
THEY ARE FANTASTIC INFORMATION
BUT IF YOU WANT TO CAPTURE
EVERYTHING RAW, IT CONSUMES OUR
ENTIRE BUDGET FOR THE YEAR.
YOU CAN PROBABLY CONSUME IT ALL
AND NOT EVEN GET ALL THE
EXPERIMENTS BECAUSE THEY ARE 5
PETABYTES PER TISSUE TYPE OR PER
CELL.
IT'S INSANE.
SO OBVIOUSLY CHOICES HAVE TO BE
MADE ABOUT WHAT DOES THE LIBRARY
NEED?
DO I LIKE TO ALIGN THAT?
THAT IS WHERE THE EXPERTISE
COULD BE.
WHAT PART OF THIS DATA IS MOST
STRATEGIC FOR AI.
WHAT IS MOST STRATEGIC FOR OUR
MISSION IMPROVING HUMAN HEALTH?
THAT'S THE EYE ON THE PRIZE IS
HOW DOES THAT YOU WILL OF THIS
INVESTMENT MOVE THAT NEEDLE AND
ARE WE MEASURING THAT AND CAN WE
DRAW A LINE OF CAUSATION BACK TO
THE CHOICES WE MAKE?
HOW DO WE DO THAT?
IN A DEFENSIBLE WAY.
THOSE ARE QUESTIONS FOR THE
BOARD JUST WITH THE RESOURCES WE
HAVE NOW.
I THINK THERE IS A LOT ON THE
TABLE ABOUT BEING THOUGHTFUL AND
NOT JUST TELLING SUCCESS STORY
BECAUSE IT WAS SUCCESSFUL IN THE
MOMENT, BUT ALWAYS CHALLENGING
OURSELVES THAT WE ARE DOING THE
SUCCESS FOR THE NIH PRIORITIES
AND VISION.
AND WE GOT A NEW DIRECTOR AND
EXCITING VISION.
HE IS DATA FORWARD.
REALLY LOOKING FOR NLM TO THE
START LEADING A PRACTICE OF
FEDERATION.
THAT'S A VERY DIFFERENT PRACTICE
FOR NLM THAN WHAT WE DID WITH
CENTRAL COLLECTIONS THAT WE CAN
CURATE AND ORGANIZE AND CATALOG.
NOW WE GET TO WORK WITH A WORLD
THAT IS UNPREDICTABLE.
AND ARE THEY THERE?
WHAT'S THE QUALITY?
WHAT'S THE DATA STANDARD THEY
ARE USING?
THAT'S SOMETHING WE CAN'T DO IT
ALL.
HOW DO WE WORK WITH OUR
NEIGHBORS AND PARTNERS IN THIS?
WE HAVE EXPERIENCE IN DOING
THAT, IT'S NOT A NEW PROBLEM.
BUT I THINK THE SCALE OF THIS IS
ALSO WHAT IS GROWING TOO.
NIH HAS A DATA IR SHAKING POLICY
THAT IS GOING TO PUSH AN
INCREDIBLE AMOUNT OF RAW
INVESTIGATOR GENERATED DATE AT
OUT INTO THE WORLD AND HOW DO WE
ORGANIZE THIS AND MAKE SURE
THERE IS VALUE IN ALL OF THAT
EFFORT?
AND NOT US INDIVIDUALLY BUT US
AS NIH.
THERE ARE ALL THESE
OPPORTUNITIES THAT ARE COMING AT
US FOR POLICY AND FROM OTHER
FORCES THAT THE BOARD CAN
CERTAINLY HELP WITH.
SO I DON'T THINK THIS WILL BE A
BORING SET OF CONVERSATIONS.
I JUST DON'T KNOW THERE IS
ENOUGH TIME TO COVER IT ALL.
THAT'S MY WORRY.
>> ABSOLUTELY.
AND I THINK I PERSONALLY AM
LOOKING FORWARD TO LEARNING FROM
THESE DISCUSSIONS AND APPLYING
THEM IN OTHER SPACES.
SO EXCITED ABOUT ALL OF THE
THINGS THAT YOU JUST MENTIONED.
LOLA, I SEE YOUR HAND IS UP.
>> SO, STEPHEN, I WAS JUST
WONDERING AS YOU WERE TALKING,
WONDERING ABOUT THE ROLE OF THIS
NEW CENTER FOR INFORMATION
TECHNOLOGY.
AND WHAT THE -- WHETHER THERE
WILL BE COLLABORATION WITH THE
NLM?
IS THERE OVERLAP?
SOME OF THE THINGS YOU WERE
TALKING ABOUT BE ADDRESSED BY
OTHER ENTITIES WITHIN THE NIH?
>> SO JUST TO BE CLEAR, THE CIT,
CENTER FOR INFORMATION
TECHNOLOGY IS A LONGSTANDING
PART OF NIH.
IT MAY RUN ENTERPRISE IT SYSTEMS
FOR NIH.
THEY DO THE GRANT SYSTEM.
THEY DO E-MAIL.
THEY DO THE DIRECTORY.
THEY DO LOG IN AND SECURITY AND
THEY DO SOME DATA SERVICES FOR
SOME OF THE SMALLER ICs,
INSTITUTES OR CENTERS THAT DON'T
HAVE THE THEIR OWN MASSIVE
BUDGET.
NLM WE HAVE A DATA CENTER
SEPARATE FROM CIT BUT OURSELVES
IS OUTWARD FACING FOR
INFORMATION TO GO OUT.
CIT REALLY HANDLES THE
COMPUTATIONAL RESOURCES FOR THE
INTRAMURAL PROGRAM AS A WHOLE.
SO THE NIH SUPER COMPUTER
CLUSTER IS OPERATE BIDE CIT, FOR
EXAMPLE.
THEY DO THE CAMPUS NETWORK AND
THE PERIMETER.
NLM HAS OUR OWN DIFFERENT
NETWORK BECAUSE WE ARE SO
OUTWARD FACING WITH OUR PUBLIC
SERVICES.
SO, YES, THERE IS A SYNERGY AND
A STRATEGY.
WE USE THEIR SERVICES.
THEY USE OUR SERVICES.
SO IT IS MUTUALISTIC.
THE CC ALIVE IS THE NEW THING WE
ARE BUILDING, CENTER FOR
OBSERVATIONAL INVESTIGATIONS IN
CLINICAL DATASETS.
THAT'S A NEW THING AND LIKE A
NEW DATA STORE IN SERVICE AND
ENVIRONMENT.
HOW DO YOU CHARACTERIZE THESE
VERY LARGE CLINICAL DATASETS IN
A WAY TO HELP USERS TO FIGURE
OUT IS IT USEFUL FOR MY QUESTION
BEFORE I GO THROUGH ALL THE PAIN
AND EFFORT AND COST TO GET
PERMISSION TO USE IT?
AND WE ARE TRYING TO ACCELERATE
VALUE AND LEVERAGE OF THESE
CLINICAL CENTER INVESTMENTS.
BUT YES, THERE WILL BE SOME
STRATEGIES FOR INTEGRATING DATA.
AND SO ANOTHER EXAMPLE, WE HAVE
A DATA STORE HERE SEQUENCE
REARCHIVE THAT BECAME TOO LARGE
FOR NLM TO SUPPORT THE STORAGE
OF ALL THE DATA.
OTHER INSTITUTES FUND THE
SEQUENCING THAT GENERATES THE
DATA.
THE STORAGE WAS ON US.
WE COVERED THAT AS LONG AS WE
COULD BUT IT EXCEEDED OUR BUDGET
AND THE THINGS LIKE SINGLE CELL
SEQUENCING, WE'RE AT A POSITION
NOW WE HAD TO SAY, NO, WE CAN'T
TAKE YOUR RESULTS.
IT'S TOO BIG.
THAT'S NOT GOOD IF ARE SCIENCE.
AND THAT'S THE FUTURE OF SCIENCE
AND THAT'S WHERE THE PRECISION
IS.
IS THERE A WAY WE CAN COMPRESS
IT AND REIMAGINE THE FORMATS?
THAT'S 1% OF THE SIZE OF WHAT
THEY GENERATE BUT STILL USEFUL
FOR ANALYSIS?
SOME SORT OF ANALYTICAL SUMMARY?
WHAT WOULD THAT LOOK LIKE?
WHAT ARE THE TOOL CHAINS?
THAT'S A WHOLE CONVERSATIONAL
PATH WHERE WE DON'T HAVE THE
LUXURY OF BEING ABLE TO STORE
ORIGINAL DATA OFF INSTRUMENT.
AS POWERFUL AS THAT IS BECAUSE
IT'S UNTOUCHED BY HUMAN
ASSUMPTION, INSTRUMENT DATA IS
UNBIAS AND THE RECORD OF THE
EXPERIMENT IN THE NATURAL AND
POWERFUL BUT IT'S TOO MUCH.
SO WE HAVE TO FIGURE OUT HOW TO
DO THOUGHTFUL PRESERVATION.
AND THAT'S JUST ONE EXAMPLE IN
GENOMICS.
THERE ARE CHALLENGES IN IMAGES,
MIGHT BE CHALLENGES COMING UP IN
LARGE INDIVIDUAL LEVEL CLINICAL
DATASETS.
IF THE WE START MANAGING
DATASETS ON A NATIONAL SCALE,
THAT COME IN AND ARE ORGANIZED
AND DOING LOTS OF WORK AND ALL
SORTS OF DOMAINS THAT ARE BIG.
THOSE ARE OF THE OPPORTUNITIES
TO THINK ABOUT WHAT SERVICES DO
WE HAVE NOW?
WHERE WOULD THEY GO
STRATEGICALLY AND THAT'S THE
KIND OF TOPIC THAT WOULD COME UP
UNDER THIS OPERATIONAL
EXCELLENCE, REVIEW AND THAT'S
WHERE CROSSWALKS INTO THE
INNOVATION INITIATIVES, WHERE DO
WE WANT TO GO NEXT?
OR IS IT SOMETHING WE HAVE TO
REBUILD NEW?
WE DON'T WANT TO CARRY THE OLD
THING FORWARD.
START WITH A BLANK SLATE AND DO
SOMETHING NEW.
THOSE ARE THE KINDS OF
DISCUSSIONS IMAGINE WE WILL BE
HAPPY TO HAVE.
>> ANY OTHER COMMENTS OR
QUESTIONS?
THOUGHTS THAT THE BOARD WOULD
LIKE TO SHARE?
ALL RIGHT, WONDERFUL.
IT STRIKES ME THAT MANY OF THE
THINGS WE'RE TALKING ABOUT IN
THIS SECTION ACTUALLY REFLECT
THE WORK OF THE NATIONAL LIBRARY
OF MEDICINE FOR MANY, MANY
YEARS.
THE COLLECTING, MAKING
DISCOVERABLE, PRESERVING AND
SUPPORTING RESEARCH AND CARE.
AND IT'S TAKING A WHOLE NEW
APPROACH AND NEW -- MAKING NEW
THINGS AVAILABLE.
IT'S REALLY QUITE DRAMATIC AND
EXCITING TO BE HAVING THESE
CONVERSATIONS.
SO, I THINK WE ARE AT THE END OF
THIS SECTION.
IF THERE IS ANYTHING ELSE THAT
ANYONE WOULD LIKE TO MENTION, I
THINK THAT WOULD BE WONDERFUL
AND I WELCOME IT.
BUT OTHERWISE, WE CAN BREAK.
ANY LAST COMMENTS?
OKAY, WONDERFUL.
WE WILL RECONVENE AT 12:50
EASTERN TIME.
AND WE LOOK FORWARD TO SEEING
YOU THEN.
THANK YOU.
>> WELCOME BACK.
WE ARE READY FOR AGENDA ITEM
NUMBER 6, A DECISION ABOUT
CONCEPT CLEARANCE FOR
COMPUTATIONAL APPROACHES FOR
CURATION AT SCALE FOR BIOMEDICAL
RESEARCH ASSETS.
I'D LIKE TO WELCOME
DR. CATHERINE FARRELL TO PRESENT
THIS INFORMATION.
THANK YOU, CATHERINE.
>> SO, HI, EVERYBODY.
AND THANK YOU FOR THE
INTRODUCTION.
I'M CATHERINE FARRELL, A STAFF
SCIENTIST CURRENTLY WORKING ON A
DETAIL POSITION ON THE DIVISION
OF EXTRAMURAL PROGRAMS.
MY BACKGROUND IS IN GENOMICS AND
DATA CURATION AND THE SUBJECT OF
THIS CONCEPT CLEARANCE,
COMPUTATIONAL APPROACHES TO
CURATION AT SCALE.
CURATION IS NECESSARY TO CATALOG
A WIDE VARIETY OF BIOMEDICAL
DATA ASSETS AND TO MAXIMIZE
THEIR REACH.
TODAY WE LIVE IN A DATA DRIVEN
WORLD SO CONTINUED INVESTMENTS
IN INNOVATIVE RESEARCH ARE
NECESSARY TO INCREASE THE SPEED
AND SCOPE OF CURATION PROCESSES
FOR EVER-GROWING VOLUMES OF
DATA.
THEREFORE, IN MAY 2018, NLM
ISSUED A OPPORTUNITY ENTITLED,
COMPUTATIONAL APPROACHES TO
CURATION AT SCALE FOR BIOMEDICAL
RESEARCH ASSETS.
THE MAJOR OBJECTIVE IS TO
ACCELERATE ACCESS TO AND
AVAILABILITY OF SECURE, COMPLETE
DATA AND COMPUTATIONAL MODELS
THAT CAN SERVE AS THE BASIS FOR
TRANSFORMATIVE BIOMEDICAL
DISCOVERIES.
ALSO TO LEVERAGE COMPUTATIONAL
STRATEGIES THAT SERVE AS
OPEN-SOURCE TOOLS FOR RAPID,
ACCURATE AND SCALABLE AUTOMATION
OF BIOMEDICAL DITA CURATION.
IN SEPTEMBER OF 2020, THE SAME
FUNDING OPPORTUNITY WAS
RE-ISSUED TO ENABLE CONTINUED
DEVELOPMENT OF INNOVATIVE
AT-SCALE CURATION PROCESSES TO
CATALOG INCREASING AMOUNTS OF
DATA BEING PRODUCED FROM THE
GROWING FIELD OF DATA SCIENCE.
THAT FUNDING OPPORTUNITY EXPIRED
LAST WEEK ON MAY 8.
GOING FORWARD, WE CONTINUE TO
HAVE ONGOING DATA EXPLOSION THAT
WE NEED TO MANAGE AND PROVIDE
VALUE FOR.
THEREFORE, THERE WAS A CONTINUED
MOVE TO DEVELOP NOVEL APPROACHES
FOR DATA-MINING AND KNOWLEDGE
DISCOVERY.
MAJOR GOAL OF THE CURRENT NLM
STRATEGIC PLAN IN THAT IT
ACCELERATES THIS DISCOVERY AND
ADVANCES HEALTH THROUGH
DATA-DRIVEN RESEARCH,
SPECIFICALLY SUPPORTS THE
FOLLOWING GOAL ONE OBJECTIVES.
TO CONNECT THE RESOURCES OF A
DIGITAL RESEARCH ENTERPRISE AN
IMPORTANT RESEARCH DIRECTION
WILL DEVELOP STRATEGIES FOR
CURATION AT SCALE AND THOSE THAT
ACCELERATE THE STANDARDS,
DEVELOPMENT AND APPLICATION
PROCESS.
IT ALSO SUPPORTS ADVANCE
RESEARCH AND DEVELOPMENT IN
BIOMEDICAL INFORMATICS AND DATA
SCIENCE WHERE THE TEXT INDICATES
THAT AUTOMATIC, AUTONOMOUS
CURATION STRATEGIES WILL ALLOW
FOR OPERATION AND EFFICIENCY AS
WELL AS ACCELERATE THE SPEED OF
THE DISCOVERY.
AND IN ADDITION, IT SUPPORTS TO
FOSTER OPEN SCIENCE POLICIES AND
PRACTICES WHERE NLM ADVOCATES
FOR INFORMATION AND DATA SYSTEMS
THAT PRESERVE AND MAKE
PUBLICATIONS, DATA AND OTHER
RESEARCH OUTPUTS DISCOVERABLE
AND ACCESSIBLE TO THE BROADEST
POSSIBLE AUDIENCES.
AND THAT'S WHAT DATA CURATION IS
TO ACCOMPLISH.
SO THE ROLE OF SCALABLE CURATION
IS ALREADY AN INTEGRAL PART OF
THE NLM STRATEGIC PLAN.
A RECENT PORTFOLIOINAL INDICATED
THAT ADMISSIONS WERE RECEIVED
FROM 2018 TO THE PRESENT WHICH
REFLECTS THE BIOMEDICAL RESEARCH
COMMUNITIES INTEREST IN THIS
TOPIC.
15 GRANTS WERE AWARDED FOR A
TOTAL OF 14.4 MILLION AND THOSE
FUNDED PROJECTS CAN PRODUCE 74
PUBLICATIONS SO FAR WITH OVER
1100 CITATIONS.
AWARDED PROJECTS COVER A WIDE
RANGE OF CURATION SUBJECTS THAT
INDICATED IN THE RIGHT HANDLE
PANEL AND THAT INCLUDE TOPICS
SUCH AS BIOMEDICAL IMAGING,
ELECTRONIC HEALTH RECORDS,
BIOMEDICAL METADATA AND
LITERATURE CURATION.
FROM THE AWARDED PROJECTS, 87%
USED SOME FORM OF MACHINE
LEARNING FOR ARTIFICIAL
INTELLIGENCE COMPUTATIONAL
METHODS REFLECTIVE OF CURRENT
TRENDS AND COMPUTATIONAL
TECHNOLOGIES.
HOWEVER, WHEN ANALYZING THE
CURATION TOPICS FROM ALL 118
SUBMISSIONS RECEIVED, WE NOTICED
THERE WERE LOW NUMBERS OF
APPLICATIONS FROM MOLECULAR
BIOLOGY DATA CURATION, SUCH AS
GENOMIC, PROTEOMICS OR GENETIC
VARIATION DATA AND ALSO FROM
METABOLOMIC AND PUBLIC HEALTH OR
EPIDEMIOLOGICAL DATA.
SINCE MASSIVE AMOUNTS OF DATA
ARE BEING PRODUCED IN THOSE
AREAS AND THEY ARE HIGHLY
IMPORTANT IN CURRENT HEALTH
RESEARCH, IT WOULD BE DESIRABLE
TO ATTRACT MORE APPLICATIONS TO
ACHIEVE SCALABLE CURATION IN
THOSE FIELDS.
MARCH 2022, NLM HAD A CURATION
SCALE WORKSHOP ATTENDED BY
MEMBERS OF THE BIOCURATION AND
WIDER DATA SCIENCE COMMUNITIES.
THERE WERE APPROXIMATELY 800
REGISTRANTS FROM ACADEMIA,
GOVERNMENT, PUBLISHERS AND
INDUSTRY AND IT BROUGHT TOGETHER
BIOCURATORS, DEVELOPERS AND
OTHER STAKEHOLDERS.
THE WORKSHOP SHOWCASED AN ARRAY
OF DATA TYPES AND RESEARCH AREAS
THAT BENEFIT FROM INNOVATION
AT-SCALE CURATION INCLUDING
RESEARCH FROM NLM AWARDEES.
IT INCLUDED PRODUCTIVE
DISCUSSIONS ABOUT FUTURE NEEDS
FOR HANDLING LARGE VOLUMES OF
DATA TYPES THAT REQUIRE CURATION
FOR FINDABLE, ACCESSIBLE,
INTEROPERABLE, REUSABLE OR FAIR
DATA MANAGEMENT.
A FEW TAKEAWAYS FROM THE
WORKSHOP INCLUDED AN EMPHASIS
FROM FIRE DATA PRINCIPLES BEING
CRITICAL OF CURATED DATA AND THE
FOUR Ss THAT ARE NECESSARY,
SPEED, SCALE, SHARING AND
STANDARDS.
ONGOING INCREASES IN SPEED AND
SCALE ARE NECESSARY TO HANDLE
THE LARGE VOLUMES OF DATA BEING
PRODUCED IN VARIOUS BIOMEDICAL
RESEARCH AREAS BUT THAT MAY
INVOLVE TRADEOFFS WITH RESPECT
TO CURATED DATA QUALITY AS WOULD
BE ACHIEVED BY MANUAL
OCCURRATION.
HOWEVER, MANUAL OCCURRATION IS
NOT FAST ENOUGH TO MEET CURRENT
RESEARCH NEEDS.
A DISCUSSION PANEL AND WILL
SEVERAL SPEAKERS ALSO EMPHASIZED
DATA STANDARDS BEING KEY FOR
SUCCESSFUL DATA SHARING AND
ARCHIVING OF INFORMATION.
WITH METADATA STANDARDS BEING
PARTICULARLY IMPORTANT GIVEN THE
MOST FAIR PRINCIPLES INVOLVED IN
METADATA.
IT WAS ALSO A RELIABLE, CREDIBLE
AND TRUSTED DATA FOR WIDESPREAD
USE ARE NECESSARY.
AND RESEARCH NEEDS TO CAREFULLY
EVALUATE THE CURATION PRODUCTS
AND TO CONSIDER THEIR DOWNSTREAM
USE.
BUT THOSE WORKSHOP INSIGHTS IN
MIND, TOGETHER WITH THE
PORTFOLIO ANALYSIS OF
SUBMISSIONS RECEIVED AND AWARDED
PROJECTS, ALSO NLM PROGRAM STAFF
BRAINSTORMING AND OTHER RESEARCH
INTO THE CURRENT STATE OF THE
BIOCURATION FIELD.
A REISSUE OF THE SAME IS
PROPOSED, HENCE THIS CONCEPT
CLEARANCE.
COMPARED TO THE PREVIOUS, THE
ISSUED NOFO COULD INCLUDE, A
CLEARER STATEMENTS OF INTEREST
IN THE DIVERSE RANGE OF DATA
TYPES TO INCLUDE MOLECULAR
BIOLOGY, METABOLOMIC AND PUBLIC
HEALTH DATA TYPES TO BALANCE AND
AUGMENT THE CONTINUED INTEREST
IN THE VARIOUS DATA TOPICS
ALREADY ADDRESSED.
THAT UPDATE WILL ADDRESS THE
CURRENT PORTFOLIO GAPS MENTIONED
EARLIER IN THIS PRESENTATION.
WITH RESPECT TO WORKSHOP AND
FIELD ANALYSIS RECOMMENDATIONS,
THE RE-ISSUED NOFO WOULD INCLUDE
AN EMPHASIS ON DATA CREDIBILITY
AND PROVIDENCE AND ON THE
IMPORTANCE OF USE CASE OF A
CURATED DATASET OR TOOL WHERE A
DURABLE FAIR PRODUCT IS EXPECTED
TO INFORM AND ADVANCE FURTHER
RESEARCH.
IT WOULD ALSO BE AN EMPHASIS ON
THE EVALUATION STRATEGY USED FOR
THE COMPUTATIONAL APPROACH WHERE
APPLICANTS WOULD BE REQUIRED TO
DESCRIBE A PLAN TO ACCOUNT FOR
ACCURACY OF THE PRODUCT, TO
MAINTAIN THE PRODUCT AND TO
CAPTURE AND COMMUNICATE ETHICAL
CONSIDERATIONS FOR DOWNSTREAM
DATA OR TOOL USE.
THIS SLIDE LISTS EXAMPLE TOPICS
THAT COULD BE FUNDED WHERE THE
YELLOW FLAGS ARE THE RIGHT
INDICATE NEW TOPICS SUGGESTED
FOR THE RE-ISSUED NOFO COMPARED
TO THE PROPREVIOUS ONES.
AMONG MANY POSSIBILITIES THESE
COULD INCLUDE AUTOMATED
APPROACHES FOR MINING,
FORMATTING AND HARMONIZING
GENOMIC, PROTEOMICS OR GENETIC
VARIANT DATA FOUND IN DISPARATE
SUPPLEMENTAL FILES IN BIOMEDICAL
LITERATURE.
AUTOMATED CURATION AND
CATEGORIZATION OF
EPIDEMIOLOGICAL DATA, SUCH AS
DATA ACROSS THE SOCIOECONOMIC
SPECTRUM.
AUTOMATED APPROACHES FOR
CURATION OF MULTI-FACETTED DATA,
SUCH AS BIOCLINICAL, MULTIOMIC,
TEXT METADATA AND BIOIMAGING
DATA THAT ARE SUITABLE FOR
COMBINED INGESTION AND
CATALOGING.
AUTOMATED QUALITY CONTROL
APPROACHES THAT INCREASE THE
COMPLETENESS, ACCURACY OR
QUALITY OF THE DATASET OR MODEL.
APPROACHES FOR STREAMLINING THE
EFFECTIVE CAPTURE AND
COMMUNICATION OF ETHICAL
CONSIDERATIONS FOR DOWNSTREAM
DATA USE.
THE AIMS FOR REISSUE OF THIS
NOFO WOULD INCLUDE, CONTINUED
ADVANCEMENT OF HUMAN HEALTH
THROUGH DATA-DRIVEN RESEARCH
FROM VAST QUANTITIES OF DATA
THAT WILL NEED TO BE CURATED,
INTEGRATED AND HARMONIZED USING
INNOVATIVE COMPUTATIONAL
APPROACHES.
OF PARTICULAR RELEVANCE IS
BREAKTHROUGHS ON MACHINE
LEARNING TECHNOLOGIES ARE
EXPECTED ACROSS A WIDE RANGE OF
RESEARCH FIELDS OVER THE COMING
YEARS, HENCE A RELIANCE ON LARGE
VOLUMES OF WELL-CURATED AND FAIR
DATA.
THE RE-ISSUED NOFO WILL SERVE TO
MEET ONGOING NEEDS FOR THE NLM
STRATEGIC PLAN AND WILL
ADDITIONALLY SUPPORT NIH DATA
MANAGEMENT AND SHARING POLICIES.
IT WILL ALSO CONTINUE TO SUPPORT
THE DEVELOPMENT OF NOVEL AND
INNOVATIVE COMPUTATIONAL
APPROACHES NEEDED TO ACCOMPLISH
SCALE AND CURATION.
AND IT'S EXPECTED TO FOSTER THE
PRODUCTION OF RELIABLE,
ACCURATE, CREDIBLE, TRUSTED,
HIGH-VALUE CURATED DATASETS OR
TOOLS THAT WOULD SERVE TO
ADVANCE MISSION-RELATED
RESEARCH.
FINALLY, IT IS ANTICIPATED THAT
NLM WILL PROVIDE 250,000 IN
DIRECT COSTS PER YEAR FOR A
MAXIMUM OF FOUR YEARS FOR
APPROXIMATELY FIVE-SIX AWARDS IN
THIS AREA.
WITH THAT, I WILL STOP TO LEAVE
TIME FOR FURTHER DISCUSSION, BUT
I WANT TO THANK OUR NLM PROGRAM
STAFF FOR THE INSIGHTS IN
PREPARING THIS CONCEPT
CLEARANCE.
ALSO OUR PAST STAFF INVOLVED IN
PRODUCING THE PREVIOUS NOFOs
AND ORGANIZING THE WORKSHOP.
THANKS TO ALL OF YOU FOR
LISTENING TODAY.
>> WONDERFUL.
THANK YOU VERY MUCH DR. FERRELL.
I WOULD LIKE TO WELCOME MY
COLLEAGUE, PHILIP WALKER TO
DISCUSS THE CONCEPT CLEARANCE
WITH YOU AND SEE IF WE HAVE ANY
QUESTIONS.
AND THEN WE'LL OPEN IT UP TO THE
REST OF THE BOARD OF REGENTS FOR
ANY QUESTIONS.
PHILIP, WOULD YOU LIKE TO START,
OR SHALL I?
>> NO, I'M FINE WITH STARTING.
THANK YOU, DR. FERRELL FOR THE
PRESENTATION.
I HAVE SOMEWHAT OF A -- I GUESS
MORE OF A LO GEST CALL-TYPE WORK
FLOW QUESTION.
PARTICULARLY -- LOGISTICAL --
WITH THE PUBLIC HEALTH
DISCIPLINES, I'M TRYING TO
REALLY WRAP MY HEAD AROUND, ARE
YOU SAYING THAT YOU HAVE DATA
AND YOU WOULD NEED AN
EPIDEMIOLOGIST TO CURATE IT,
CREATE THE METADATA?
OR WHAT IS THE WORK FLOW BETWEEN
THE PUBLIC HEALTH COHORT AND THE
NO FOE?
WHAT IS THE INNER PROJECT, I'M
TRYING TO FIGURE OUT.
>> SO WE PUT LARGE APPLICANTS TO
TAKE THE DATA THAT IS ALREADY
OUT THERE AND TO FORM IT AND
CURATE IT IN A MORE USEABLE
FASHION.
THAT EVERYBODY CAN ACCESS.
>> OKAY.
>> AND THAT WE KNOW -- THERE ARE
MASSIVE AMOUNTS OF DATA ALREADY
THERE AS WELL AS WHAT IS GOING
TO COME.
>> OKAY, THAT MAKES SENSE.
SO, I GUESS FROM A MARKETING
PERSPECTIVE, HAVE YOU SPOKEN
WITH THIS GROUP -- IS IT LACK OF
AWARENESS?
IS THE DATA NOT GRANULAR ENOUGH?
OR LACK OF SKILL SET HERE?
>> WE HAVEN'T SPOKEN TO
INDIVIDUAL COHORTS OR ANYTHING,
BUT WE KNOW FROM THE LITERATURE
AND FROM THE WHOLE FIELD OF
BIOCURATION, JUST LOOKING AT THE
WORKSHOP AND FROM LITERATURE,
FROM INFORMATION IN BRYO
CURATION ORGANIZATIONS THAT
THERE IS DEFINITELY DATA THERE
THAT NOT EVERYBODY CAN ACCESS OR
KNOWS ABOUT OR IT'S JUST THAT
THERE IS SO MUCH OF IT THERE
THAT THEY NEED TO HAVE A LITTLE
MORE USEABLE, SUMMARIZED,
INTEGRATED, HARMONIZED FASHION.
>> OKAY.
I'M THINKING OPTIMISTICALLY AND
HOPING THAT THERE IS SOME
MOMENTUM FROM THE COVID PANDEMIC
THAT THIS NEW REISSUE MAY HAVE A
GREATER NEED AND PEOPLE COULD
START TO SEE ITS UTILITY MORE.
ARE THERE PLACES WHERE THE --
SIMILAR TO THE EARLIER
DISCUSSIONS ON THE CCOI, WERE
THERE PLACES WHERE THE DATASETS
ARE DISCOVERED SO PEOPLE CAN SEE
PRIOR TO APPLYING FOR THE
FUNDING OPPORTUNITIES?
>> WE WOULD ASSUME THAT THEY
ALREADY ARE EXPERIENCING IN
THOSE FIELDS ALREADY ARE AWARE
THEY NEED TO DO SOMETHING TO
ROUND UP DATA.
>> OKAY.
THAT'S ALL FOR ME, KRISTI.
>> THE GREAT.
THANK YOU.
SO DR. FERRELL I'M REALLY
EXCITED ABOUT THIS NOTICE OF
FUNDING AWARD DISCUSSION BECAUSE
I THINK WHEN YOU CONSIDER IT'S
KIND OF A CULMINATION OF A LOT
OF DIFFERENT FACTORS, RIGHT?
THERE IS NEW KINDS OF DATA.
THERE IS LOTS OF MULTIMODAL
EXPERIMENTS.
THERE IS A GREATER NEED TO BE
ABLE TO MAKE DATA NOT JUST SHARE
IT BUT MAKE IT REUSABLE.
AND CURATION IS DEFINITELY A
NARROWING OF THE PIPELINE IN
TERMS OF HOW YOU GET THAT DONE.
AND I THINK REALLY REFLECTS THE
EXPERTISE THAT BIOCURATORS BRING
TO THIS TASK.
BUT, ALSO REQUIRES INCREDIBLE
INVESTMENT IN TERMS OF BEING
ABLE TO HELP US ACCOMPLISH THIS
CRITICAL TASK.
SO, THANK YOU.
I APPRECIATE THE -- SOME OF THE
CHANGES OR THE REFLECTION OF THE
ONGOING DISCUSSIONS AT NLM WITH
VARIOUS FOLKS AS WELL AS THE
WORKSHOP.
AND I'M WONDERING, YOU KNOW, AS
I REFLECT, WE TALKED A LITTLE
BIT ABOUT THE WORKFORCE EARLIER
IN THE MEETING.
AND I THINK ABOUT SCIENCE IS
SUCH A TEAM SPORT.
I'M WONDERING IF DURING THE
WORKSHOP OR IN THE DISCUSSION OF
THIS NOTICE OF FUNDING
OPPORTUNITY, IF THERE WAS A
DISCUSSION ABOUT THE INDIVIDUALS
WHO MAY BE INTERSECTING WITH
THIS CURATION ACTIVITY?
SO THE CURATORS BUT ALSO THE
DATA PRODUCERS, THE
INVESTIGATORS, FOLKS IN THE
CLINICAL ENVIRONMENT, THAT KIND
OF THING.
I'M JUST CURIOUS AND WOULD LOVE
TO HEAR YOUR PERSPECTIVE ON
THAT.
>> WITHIN THE BIOCURATION
COMMUNITY THERE ARE SOME
INITIATIVES FOR COMMUNITY-DRIVEN
CURATION ACTIVITIES.
AND WE DID RECEIVE SOME
APPLICATIONS ON THAT.
SO IT OBVIOUSLY IS GOING TO HAVE
TO BE LIKE A BIG TEAM EFFORT AND
THE MORE INPUT WE CAN GET FROM
USERS TO DO THIS, THE BETTER.
AND THE CURATION PROCESS
INVOLVES SOME EXPERTISE WHERE
MAYBE THE INFORMATION WILL BE
PROVIDED BY THE COMMUNITY AND
SOMEBODY WITH EXPERTISE WOULD
COME ALONG AND PRODUCE THE FINAL
CURATIVE PRODUCT OR FORMAT IT TO
BE GENERAL, ET CETERA AND
USEABLE.
BUT THERE DEFINITELY ARE
OPPORTUNITIES FOR COMMUNITY
CURATION EFFORTS.
>> THAT'S WONDERFUL, THANK YOU.
AND I'M ACTUALLY QUITE EXCITED
ABOUT NOT ONLY SUPPORT FOR THE
DATA MANAGEMENT AND SHARING
POLICIES AT NIH, BUT JUST OF THE
IDEA OF CONTINUING TO BOLSTER
THAT FOUNDATIONAL INFRASTRUCTURE
THAT WE NEED TO BE ABLE TO GET
OUR WORK DONE.
SO, THIS IS REALLY TERRIFIC.
SO I WILL OPEN IT UP TO THE REST
OF THE GROUP AND SEE IF THERE
ARE QUESTIONS FOR DR. FERRELL.
NO QUESTIONS?
THANK YOU, PLEASE GO AHEAD.
>> HI, THIS IS ANNE.
I WAS A PARTICIPANT IN THAT
WORKSHOP.
I GAVE A TALK ABOUT HOW WE USE
AUTOMATED PROCESSES TO ASSIST
OUR BIOCURATORS.
AND I HOPE THAT -- AND WONDERING
IF THE VISION OF THIS IS REALLY
TO KEEP THE BIOCURATION
SCIENTISTS ENGAGED IN THIS AND
HAVING THESE SYSTEMS TO BE ABLE
TO HELP THEM FOR CURATING AT
SCALE?
>> YES, WE WOULD WELCOME THIS
ASSIST.
AND OBVIOUSLY, WE DO WANT TO
KEEP BIOCURATION EXPERTS
INVOLVED IN THIS.
WE DO WE DON'T WANT IT TOO
SILOED WITH DIFFERENT
RESEARCHERS DOING THEIR OWN
THING.
WHERE IT MAY NOT BE SO
INTERDISCIPLINE ARI.
THE MORE WIDESPREAD USE THE TOOL
OR THE PRODUCT CAN HAVE, THE
BETTER.
AND YES, SOME OF OUR FROM THE
PREVIOUS NOFOs, WE DID HAVE
SOME ROUND UP METADATA, FOR
EXAMPLE, THAT COULD BE USED BY
CURATORS.
MOST OF THOSE ARE LIKE SPECIFIC
TO THE CERTAIN CURATION TOPIC
OBVIOUSLY, THE NEEDS FOR
SOMETHING LIKE BIOMEDICAL
IMAGING DATA WOULD BE SOMEWHAT
DIFFERENT THAN FOR GENOMIC DATA,
FOR EXAMPLE.
>> THANK YOU.
AND ONE LAST QUESTION FROM ME.
YOU MENTIONED ONE OF THE
POTENTIAL TOPICS THAT COULD FALL
UNDER THIS SPACE IS RELATED TO
CAPTURE AND COMMUNICATION OF
ETHICAL CONSIDERATIONS FOR DATA
REUSE.
AND SO, I'M WONDERING IF YOU
COULD SHARE WITH ME A BIT ABOUT
THE DISCUSSIONS THAT WERE
INVOLVED IN HIGHLIGHTING THIS
USE CASE OR IF THERE IS
SOMETHING THAT WOULD BE USEFUL
TO REITERATE?
I THINK IT'S TERRIFIC.
SO I WOULD LOVE TO --
>> YES, SO THIS IDEA CAME FROM
BRAINSTORMING WITH NLM PROGRAM
STAFF, SOME OF WHOM ARE WORKING
ON FUNDING OPPORTUNITIES SUCH AS
HEALTH DISPARITY-TYPE RESEARCH
AND JUST WANTED TO MAKE SURE
THAT FOR EXAMPLE, IF IT'S A
HEALTH RESEARCH CURATION
PRODUCT, THAT IT WOULDN'T BE
BIASED TOWARDS WHOLE COMMUNITY
AND NOT ANOTHER AND THAT WOULD
BE ACCESSIBLE TO EVERYBODY AND
THAT WE WOULDN'T WANT SOMEBODY,
FOR EXAMPLE, PRODUCING SOMETHING
THAT IS NOT OPEN ACCESS OR WE
WOULDN'T WANT LIKE SOME
UNIVERSITY PRODUCING SOMETHING
THAT REALLY ONLY PEOPLE IN THEIR
NETWORK OR SYSTEM CAN USE.
SO WE WANT IT TO BE EVERYTHING
TO BE USEABLE AND CURABLE AND
FAIR IN EVERY WAY.
>> INCHING THE EQUITY ISSUES
RELATED TO DATA REUSE ARE
CRITICAL AND WILL ONLY HELP TO
BENEFIT ALL OF US.
SO THANK YOU.
ARE THERE OTHER QUESTIONS OR
DISCUSSIONS THAT OR TOPICS WE'D
LIKE TO BRING UP WITH
DR. FERRELL?
>> I WANT TO GO BACK BECAUSE I
HAVE A GREATER ASSOCIATION WITH
THE PUBLIC HEALTH COMMUNITY THAN
THE MOLECULAR FOLKS.
SO, I'M WONDERING, I'M THINKING
ABOUT THE VIDEO EARLIER FROM
VANDERBILT ABOUT THE EXTRAMURAL
FUNDING AND IF THERE ARE ANY USE
CASES THAT YOU CAN PUT OUT
THERE?
BECAUSE I SEE UTILITY, I -- I
SEE VALUE HERE AND I SEE NEED,
ESPECIALLY WHETHER IT'S COMMUNE
CALL OR NON-COMMUNICABLE
DISEASES AT THE POPULATION
LEVEL.
ARE THERE ANY PRIOR CASES YOU
DEVELOPED, VIDEOS, THAT CAN HELP
BOOST AWARENESS OF THIS
OPPORTUNITY?
>> SO EXTRAMURAL PROGRAMS, WE
WOULD LOVE FOR CURE OF SCALE
OTHER THAN WORKSHOP.
THAT'S IT, THAT IS REALLY
AVAILABLE FOR ANYBODY TO WATCH.
BUT IT IS AN IDEA TO THINK ABO
ABOUT.
>> HI, I'M MAYORAL AND I'M THE
CHIEF PROGRAM OFFICER AND WORK
CLOSELY WITH CATHERINE.
SO, ONCE A NOTICE OF FUNDING
OPPORTUNITY IS PUBLISHED, IT
DOES GET COMMUNICATED IN A
WIDESPREAD WAY TO THE
UNIVERSITIES ACROSS THE COUNTRY.
THERE ARE ESTABLISHED
COMMUNICATIONS AND CHANNELS AND
WE CAN -- IF YOU'RE SAYING
YOU'RE CONCERNED IT'S NOT GOING
TO GET TO CERTAIN AUDIENCES LIKE
MAYBE A PUBLIC HEALTH AUDIENCE,
IS THAT YOUR CONCERN?
>> YES.
JUST BETWEEN THE 118 SUBMISSIONS
AND I'M THINKING AS CRISTIE
MENTION BODYWORK FORCE AND SKILL
SETS AND PEOPLE DON'T JUST
QUAKE -- I DON'T KNOW IF CERTAIN
DISCIPLINES MIGHT NOT SEE IT,
THE MOLECULAR -- THOSE FOLKS
MIGHT SEE THIS DIFFERENTLY THAN
THE PUBLIC HEALTH REALM.
SO I WAS JUST TRYING TO FIGURE
OUT IF IT'S MORE OF A
CONNECTION, MORE EFFECTIVE
MARKETING MAY BE ABLE TO HELP
WITH THAT.
THAT'S REQUEST FOLLOW THERE WERE
PREVIOUS AWARDEES AND THOSE USE
CASES CAN BE SERVED AS MARKETING
MATERIALS IN THE FUTURE
ANNOUNCEMENTS.
>> UH-HUH.
YES, I MEAN ONE THING WE COULD
DO IN THE NOFO, IN THE
ANNOUNCEMENT ITSELF, IS TO MAKE
SURE WE PROVIDE SOME EXAMPLES,
NOT NECESSARILY USE CASES BUT
EXAMPLES OF RESEARCH THAT PEOPLE
CAN CONDUCT IN THAT AREA.
THAT CERTAINLY THAT WE CAN PROP
UP A LITTLE BIT MORE SO THAT
PEOPLE IN THE PUBLIC HEALTH
COMMUNITY CAN RESONATE BETTER
WITH THIS.
THANK YOU.
>> AND ONCE THE NOFO IS
PUBLISHED, WE HAVE CONSIDERED
DOING LIKE NLM BLOG AS WELL TO
ADVERTISE A LITTLE BIT BETTER.
>> THAT'S ALL GREAT SUGGESTIONS.
I SEE DR. CARMEN PORTILLO'S HAND
IS UP.
>> GREETINGS.
SO, I DO THINK THAT WHAT MARY
HAS MENTIONED, IS A REALLY GREAT
IDEA.
AND I'M WONDERING IF NOT JUST
FROM A PUBLIC HEALTH PERSPECTIVE
BUT FROM DIFFERENT PERSPECTIVES.
SO, I MEAN I COME FROM THE
PROFESSION OF NURSING AND I
THINK THAT THERE IS A LOT OF
NURSES IN THIS AREA THAT WOULD
ALSO BE INTERESTED IN THIS.
SO THAT WOULD BE A GREAT IDEA.
THANK YOU.
>> I APPRECIATE THAT
PERSPECTIVE.
IT'S THE DIFFERENT USE CASES AS
WELL AS THE DIFFERENT ROLES THAT
ARE WORKING IN THIS SPACE.
THANK YOU SO MUCH.
DR. PALMER.
>> THANK YOU.
I JUST WANTED TO JUST REINFORCE
THIS CONCEPT.
THIS CONCEPT IS REALLY ABOUT
DEVELOPING NEW NOVEL AND NEW
COMPUTATIONAL APPROACHES.
AND THE SO, I THINK ONE OF THE
ISSUES IS THAT WHEN WE TALK
ABOUT THE PUBLIC HEALTH DATA, I
THINK OFTENTIMES WE PRODUCE A
LOT OF DATA AND SO THE QUESTION
THAT IS -- WHAT DO WE DO WITH
THAT DATA THEN?
AND ARE THERE NEW NOVEL OR
COMPUTATIONAL STRATEGIES THAT
ARE NEEDED FOR THAT DATA?
SO I THINK THAT MAY EXPLAIN WHY
WE HAD AN ABSENCE IN PUBLIC
HEALTH OR MORE OF THE
EPIDEMIOLOGICAL DATA VERSUS FOR
MORE OF THE MOLECULAR DATA WHERE
THERE IS LARGE VOLUMES OF DATA
THAT NEEDS TO BE ANALYZED
EFFICIENTLY.
SO I THINK THAT IS ONE OF THE
REASONS WHY WE HAD MORE
APPLICATIONS MORE ON THE
MOLECULAR SIDE FOR THIS -- FOR
THESE NOFOs, HISTORICALLY.
I ALSO WANT TO TAKE A MOMENT TO
SHOUT OUT TO THE CATHERINE.
SHE IS DOG A DETAIL WITH US AND
HAS BEEN WITH US FOR FOUR MONTHS
AND STEPPED IN TO TAKE ON THIS
CONCEPT SO I WANT TO GIVE HER
ALL THE ACCOLADES FOR TAKING ON
THIS ROLE IN HER DETAIL.
THANK YOU.
>> THANK YOU VERY MUCH.
THIS IS SUCH A CRITICAL NEED AND
SO IMPORTANT, ESPECIALLY RIGHT
NOW.
SO, I'M DELIGHTED TO SEE THE
ATTENTION FROM NLM AND
ESPECIALLY THROUGH THIS NEW
OPPORTUNITY TO THIS IMPORTANT
TOPIC.
SO THANK YOU SO MUCH FOR YOUR
WORK ON THIS.
AND I'M LOOKING FORWARD TO
SEEING WHAT TRANSPIRES AND THE
NEW INNOVATIONS AND IDEAS THAT
IT INSPIRES.
I WILL ASK IF THERE IS ANY OTHER
CONVERSATION TOPICS OR QUESTIONS
THAT WE HAVE FOR THE GROUP?
HEARING NONE, I'M GOING TO CALL
FOR A VOTE.
IS THERE A MOTION TO ACCEPT THE
CONCEPT CLEARANCE?
>> MOTION.
>> IS THERE A SECOND?
>> SECOND.
>> THANK YOU.
CAN I SEE BY A SHOW OF RAISED
HANDS ON CAMERA, EVERYONE IN
FAVOR, PLEASE?
ALL IN FAVOR?
THANK YOU.
ANY OPPOSED?
ALL RIGHT, WONDERFUL.
THANK YOU, THAT MOTION PASSES.
THANK YOU VERY MUCH DR. FERRELL
AND TO THE EP TEAM FOR JOINING
THIS CONVERSATION.
WE LOOK FORWARD TO THE PROGRAM
BEING ANNOUNCED.
OKAY, SO AS WE ARE MOVING DOWN
THE AGENDA, WE NEXT HAVE THE
REPORT OF THE NOMINATING
COMMITTEE FOR THE NEXT BOARD OF
REGENTS CHAIR.
Mr. PAUL WESTER SERVES AS THE
CHAIR OF THE NOMINATING
COMMITTEE FOR THE NEXT BOARD OF
REGENTS CHAIR AND HAD A LAST
MINUTE URGENT CONFLICT SO
THEREFORE IS UNABLE TO JOIN US
TODAY.
HOWEVER, I AM PLEASED TO PRESENT
THE REPORT OF THIS COMMITTEE.
SO, THE NOMINATING COMMITTEE MET
ON MARCH 6, WHICH INCLUDED
Mr. WESTER, MARY PLASMIC AND
SUZANNE, TO CONSIDER CANDIDATES
FOR THE NEXT NLM BOARD OF
REGENTS CHAIR.
THEY WERE PRESENTED WITH AN
EXCELLENT SET OF CANDIDATES AND
HAVE AN OUTSTANDING CONVERSATION
AND DISCUSSION ABOUT THESE
CANDIDATES.
AND I'M PLEASED TO ANNOUNCE THAT
AN INVITATION HAS BEEN EXTENDED
TO DR. LOLA AND SHE HAS
GRATEFULLY AGREED TO SERVE.
SO AT THIS THE POINT, I NEED TO
ASK FOR A CALL, CONCURRENCE VOTE
FOR THE FULL BOARD.
DO I HAVE A MOTION, PLEASE?
>> MOTION.
>> OKAY, THANK YOU.
AND A SECOND?
ALL RIGHT.
AND IT'S A CONCURRENCE VOTE.
AND I ASSUME THAT IT WILL PASS.
ARE THERE ANY COMMENTS ON THIS?
WONDERFUL.
I AM DELIGHTED THAT DR. OMOLOLA
OGUNYEMI IS STEPPING INTO THIS
ROLE.
SHE'LL DO A WONDERFUL JOB.
AND I AM GRATEFUL TO THE
COMMITTEE FOR THEIR SERVICE AND
LOOK FORWARD TO THE WORK OF THE
BOARD OF REGENTS IN THE NEXT
YEAR UNDER DR. OMOLOLA
OGUNYEMI'S LEADERSHIP.
LOLA, I'D LIKE TO OPEN THE FLOOR
IF YOU HAVE ANY COMMENTS OR
ANYTHING YOU WOULD LIKE TO SHARE
AT THIS TIME.
>> JUST WANTED TO SAY, THANK YOU
TO THE NOMINATING COMMITTEE AND
THANK YOU KRISTI FOR YOUR WORK
AND STEPPING IN SOME BIG SHOES.
AND I REALLY LOOK FORWARD TO
WORKING WITH ALL OF YOU.
>> THANK YOU VERY MUCH.
THIS IS REALLY WONDERFUL.
OKAY, WE ARE SLIGHTLY AHEAD OF
SCHEDULE AND SO, I JUST WANTED
TO CHECK AND SEE IF DR. RESNICK
IS ON THE CALL AND IF WE SHOULD
MOVE TO THE NEXT AGENDA ITEM?
>> YES, I'M HERE.
>> OKAY, WONDERFUL.
THANK YOU VERY MUCH.
SO, OUR NEXT PRESENTATION IS OF
IMPORTANT PROJECT AND I'M JUST
INCREDIBLY EXCITED TO HEAR ABOUT
THIS WORK, THANK YOU.
IT'S TEAM WORK FOR THE GREATER
GOOD, NLM, NIH AND PUBLIC
AVAILABILITY OF THE DIGITIZED
DOCUMENT COLLECTION FROM THE
U.S. PHS UNTREATED SYPHILIS
STUDY AT TUSKEGEE.
I LOOK LOOK FORWARD TO YOUR
COMMENTS.
>> THANK YOU.
IT'S A PRIVILEGE TO BE WITH YOU
THIS AFTERNOON.
AND TO SPEAK ABOUT THIS VERY
IMPORTANT PROJECT AND SUBJECT.
THE TITLE OF MY TALK IS BASED ON
A FANTASTIC AND VERY IMPORTANT
COLLABORATION AMONG COLLEAGUES
HERE AT THE NLM AND ACROSS THE
NIH.
SO I HOPE THAT COMES THROUGH IN
WHAT I HAVE TO SHARE WITH YOU.
SO, IN OCTOBER 2023, LAST FALL,
THE NATIONAL LIBRARY OF MEDICINE
RELEASED IN DIGITAL FORM VIA THE
DIGITAL COLLECTIONS REPOSITORY,
A COLLECTION OF REPRODUCED
DOCUMENTS FROM THE 1932 STUDY BY
THE U.S. PUBLIC HEALTH SERVICE
ON THE EFFECT OF UNTREATED
SYPHILIS IN BLACK MEN AT
TUSKEGEE IN MAY CONCOUNTY,
ALABAMA.
THE GOAL OF THE PROJECT WAS TO
MAKE THESE IMPORTANT DOCUMENTS
PREVIOUSLY ONLY AVAILABLE IN
THEIR PHYSICAL FORM, MORE
BROADLY AVAILABLE TO ENSURE THAT
THIS CHAPTER IN HISTORY IS NEVER
REPEATED AND TO BUILD GREATER
TRUST IN CURRENT BIOMEDICAL
RESEARCH THROUGH TRANSPARENCY.
MY PRESENTATION IS RATHER BRIEF,
CONSISTS OF TWO PARTS.
FIRST I WILL SPOTLIGHT THE
BACKGROUND AND TEAM WORK
BEELINED THE EFFORT TO RELEASE
THIS COLLECTION IN DIGITAL FORM.
AND FOLLOWING THIS BUILDING, I
WILL SHOW A THREE MINUTE VIDEO
PRODUCED BY THE NLM WHICH
DISCUSSES THE HISTORY OF THE
U.S. PUBLIC HEALTH SERVICE
UNTREATED SYPHILIS STUDY IN
TUSKEGEE AND THEN OFFER AN
OVERVIEW OF THE COLLECTION
ITSELF.
SO IN SEPTEMBER 2023, LAST FALL,
EARLY LAST FALL, THE NIH
LEADERSHIP WELCOMED TO THE NIH
CAMPUS REPRESENTATIVES OF
LEADERS FROM THE VOICES OF OUR
FATHER'S LEGACY FOUNDATION.
THESE INDIVIDUALS ARE
DESCENDANTS OF MEN WHO WERE
TREATED UNETHICALLY IN THE USPHS
UNTREATED SYPHILIS STUDY.
THESE REPRESENTATIVES TRAVELED
TO THE NIH CAMPUS TO STUDY THE
NLM'S COLLECTION OF REPRODUCED
DOCUMENTS FROM THE STUDY.
THIS COLLECTION HAD ALWAYS BEEN
OPEN AND AVAILABLE TO STUDY ON
SITE AT THE NLM AND STAFF HAD
ALREADY BEGUN PREPARATION OF THE
COLLECTION FOR DIGITAL RELEASE
WORK WHICH ORIGINATED BEFORE THE
COVID-19 PANDEMIC.
ON THIS FALL DAY, IT WAS A
PRIVILEGE FOR ALL OF US TO
WELCOME REPRESENTATIVES OF THE
FOUNDATION TO UNDERTAKE THEIR
OWN RESEARCH IN THE COLLECTION
AND TO SERVE AS A DIRECTORY
SOURCE FOR THEM AS THEY STUDIED
THIS MATERIAL.
A MONTH FOLLOWING THE VISIT OF
THESE REPRESENTATIVES, THE NLM
RELEASED THE COLLECTION VIA THE
DIGITAL COLLECTIONS REPOSITORY.
THIS ACHIEVEMENT ANNOUNCED ON
OCTOBER 19, 2023, IT WAS MADE
POSSIBLE THROUGH THE EXPERIENCE
AND EXPERTISE OF A TEAM OF
COLLEAGUES, INCLUDING NLM
ARCHIVE AG, TECHNICAL, POLICY
AND PUBLIC AFFAIR STAFF AS WELL
AS POLICY AND PUBLIC AFFAIRS
STAFF IN THE OFFICE OF THE NIH
DIRECTOR.
THIS TEAM WORK ALSO INVOLVED
COLLEAGUES AT FISK UNIVERSITY IN
NASHVILLE, HISTORICALLY BLACK
UNIVERSITY WHICH HOLDS A PORTION
OF ORIGINAL DOCUMENTS IN LITTLE
SPECIAL COLLECTIONS DIVISION OF
THE JOHN HOPE AND AREALIA
FRANKLIN LIBRARY.
OUR WORK TOGETHER WAS A
COLLABORATION OTHER FOR THE
GREATER GOOD, TO ENSURE THIS
CHAPTER IN HISTORY IS EVER IN
REPEATED AND TO BUILD GREATER
TRUST IN CURRENT BIOMEDICAL
RESEARCH THROUGH TRANSPARENCY.
TO OFFER AN OVERVIEW OF THIS
CHAPTER IN HISTORY, ITS
HISTORICAL SIGNIFICANCE AND HOW
THE NLM CAME TO HOLD THE
COLLECTION I'M DESCRIBING TO YOU
THIS AFTERNOON, I'D LIKE TOY
SHOULD YOU A THREE-MINUTE VIDEO
PRODUCED BY THE NLM AND THE THIS
VIDEO IS AVAILABLE ON ITS
YouTube CHANNEL AT THE U
ARE.
L YOU'LL SEE AT THE BOTTOM OF
THE SCREEN.
[ VIDEO PLAYING ]
[ CAPTIONED VIDEO PLAYING ]
CERTAINLY KUDOS TO MY COLLEAGUES
WHO PRODUCED THIS.
A HELPFUL AND INFORMATIVE VIDEO.
SO THE COLLECTION THAT NLM HELD
SINCE LITTLE DEPOSIT IN 1973
CONSISTS OF MORE THAN 3000
REPRODUCED COPIES OF
CORRESPONDENCE, MEMORANDA,
MEETING MINUTES, REPORTS AND
SCIENTIFIC ARTICLES.
THESE MATERIALS REPRESENT
APPROXIMATELY 2.1 LINEAR FEET OR
FIVE STANDARD ARCHIVAL BOXES.
THESE ARE THE BOXES YOU SEE IN
THIS SLIDE.
THE COLLECTION CONSTITUTES A
HISTORICAL RECORD WHICH SINCE
THE DEPOSIT HAS INFORMED
RESEARCH LED BY HISTORIANS,
MEDICALETH ACTIVITIES AND MANY
OTHERS ACROSS A VARIETY OF
DISCIPLINES.
-- ETHICIST.
NOW AVAILABLE DIGITALLY, THIS
COLLECTION WILL INFORM MANY MORE
RESEARCH INVESTIGATIONS.
WHAT YOU SEE HERE IS THE LANDING
PAGE OF THE DIGITIZED VERSION OF
THE COLLECTION IN NLM DIGITAL
COLLECTIONS LOCATED AT THE URL
HIGHLIGHTED AT THE BOTTOM RIGHT
OF THIS SLIDE IN RED.
I'D LIKE TO SHOW YOU A CLOSER
LOOK AT THE SCOPE OF THIS
COLLECTION AND HOW ONE CAN
NAVIGATE THROUGH THIS ONLINE
PRESENTATION OF IT.
MY NEXT SLIDE IS GOING TO BE A
CLOSE UP OF THIS SECTION
HIGHLIGHTED HERE IN RED.
THE CHECKS REPRESENTS A BROAD
VARIETY OF HISTORICAL DOCUMENTS
AND OTHER WORKING PAPERS
COLLECTED BY THE AD-HOC ADVISORY
PANEL DURING THE COURSE OF ITS
INVESTIGATION AND DEPOSITED AT
THE NLM IN 1973 BY DR. RC BACK
US, THE EXECUTIVE SECRETARY AT
THE PANEL.
THESE WORKING PAPERS WERE
ORIGINALLY TITLED BY THE PANEL
ADMINISTRATORS AS, DOCUMENTS ON
THE ORIGIN AND DEVELOPMENT OF
THE TUSKEGEE SYPHILIS STUDY.
THE COLLECTION CONSISTS LARGELY
OF PHOTO COPIES OF EXTERNALLY
SOURCED BUILDING MATERIALS
ORIGINALLY HELD IN 12 BINDERS.
THE MATERIAL WAS ORGANIZED BY
THE PANEL INTO 10 GENERAL
GROUPINGS WHICH REFLECT THE
PANEL SECTIONS OF THE AD-HOC
STUDY.
NLM DIGITAL COLLECTIONS
STRUCTURES THIS COLLECTION THE
SAME WAY IT WAS ORGANIZED
PHYSICALLY, ALLOWING USERS TO
STUD AT THE VIRTUALLY AS THEY DO
PHYSICALLY IN THE NLM READING
ROOM.
AS THE RED ARROW SUGGESTS, EACH
OF THE SERIES EXPANDS TO DISPLAY
THE DOCUMENTS HEADING WITHIN.
SO WHAT I'D LIKE TO DO IS EXPAND
THE FIRST AND SECOND SERIES TO
GIVE YOU A SENSE OF THE CONTE
CONTENTS.
SO EXPANDING THE SERIES AS I
HAVE DONE HERE, USERS CAN SEE
THE COLLECTION MATERIALS AS THEY
ARE PHYSICALLY ORGANIZED.
ITEMS CAN BE STUDIED WITHIN A
SCREEN VIEWER AND THEY CAN BE
DOWNLOADED AS PDF AND OPTICAL
CHARACTER RECOGNIZED TEXT.
ADDITIONALLY USERS CAN SEARCH
THE ENTIRE COLLECTION BY
KEYWORD.
THOSE IN OUR ZOOM SESSION WILL
FIND IN THE CHAT IN A MOMENT,
THE DIRECT URL TO THE COLLECTION
NOTED HERE ON THE BOTTOM RIGHT
AND FOR THOSE WHO ARE NOT IN THE
ZOOM, I ENCOURAGE YOU TO REACH
THE COLLECTION BY VISITING THIS
SPECIFIC URL.
I'D LIKE TO CONCLUDE MY
PRESENTATION THIS AFTERNOON BY
SAYING THAT IT HAS BEEN A
PRIVILEGE WORKING WITH THE
ENTIRE TEAM HERE AT THE NLM AND
AT THE NATIONAL INSTITUTES OF
HEALTH TO MAKE THIS COLLECTION
DIGITALLY AVAILABLE FOR A WIDER
RESEARCH AND NO LESS BEING A
PART OF THE STEWARDSHIP FOR THE
GREATER GOOD OF SCIENCE AND
SOCIETY TODAY AND IN THE FUTURE.
THIS WORK OVERALL BRINGS INTO
VERY SHARP FOCUS THE IMPORTANCE
OF THE NLM IN COLLECTING,
PRESERVING AND MAKING PUBLICLY
AVAILABLE ITS COLLECTIONS TO
ADVANCE OPEN ACCESS, IMPROVE
TRANSPARENCY AND RESEARCH AND
ENSURE THAT THE LESSONS OF THE
PAST INFORM THE PRESENT AND
FUTURE OF BIOMEDICAL RESEARCH,
HEALTH CARE, PUBLIC HEALTH AND
HEALTHY BEHAVIOR.
THANK YOU AND I'M HAPPY TO
ANSWER ANY QUESTIONS YOU MIGHT
HAVE.
>> THANK YOU VERY MUCH,
DR. RESNICK.
I'D LIKE TO ASK Ms. JENNIE
LUCKY AND NANCY SNYDER WHO WILL
SERVE AS DISCUSSANTS FOR THIS
TOPIC TO JOIN THE DISCUSSION,
PLEASE.
>> SURE, THANK YOU.
HI, JEFF.
AND THANK YOU FOR YOUR GREAT
PRESENTATION.
I ESSENTIALLY HAVE BEEN PRIVY TO
YOUR KNOWLEDGE AND WORK AROUND
PRESERVING HISTORICAL DOCUMENTS
AND THIS IS JUST FASCINATING.
I GUESS I'M INTERESTED TO
UNDERSTAND WHAT THE FUTURE OF
DIGITIZING RECORDS LIKE THIS IS
AND WHAT HAPPENS TO THEERAGEINAL
DOCUMENTS?
DO THEY STAY AT NLM?
AND THEN WHO DO YOU THINK WILL
ACCESS THE DIGITIZED, GENERAL
PUBLIC, I UNDERSTAND, BUT IS
THERE A SPECIFIC GROUP YOU THINK
WILL UTILIZE THESE DOCUMENTS?
I THINK ABOUT MEDICAL SCHOOLS OR
EVEN SCHOOLS IN GENERAL.
I'M WONDERING HOW YOU THINK
THEY'LL BE UTILIZED IN THEIR
DIGITIZED FORM?
>> SURE, THANK YOU, JENNY AND
GOOD TO SEE AND YOU CERTAINLY
FAMILIAR WITH YOUR WORK AS WELL.
IT'S BEEN A WHILE SINCE WE HAVE
SEEN EACH OTHER.
DURING COVID I THINK WE MET.
GREAT TOY SEE YOU AGAIN.
LET ME TAKE YOUR LATTER QUESTION
FIRST.
NLM MAKES ITS COLLECTIONS
AVAILABLE TO ANYONE HERE IN THE
UNITED STATES OR AROUND THE
WORLD WHO WOULD FIND THEM
VALUABLE FOR RESEARCH, EDUCATION
AND LEARNING AS WE ALL KNOW.
SO THIS COLLECTION I HOPE, WOULD
BE VALUED BY HISTORIANS,
ETHICIST, JOURNALISTS, LEGAL
SCHOLARS, OR ANYONE WHO HAS A
QUESTION ABOUT THE DEPTH AND
BREATH AND COMPLEXITY OF THIS
HISTORY AND WANTS TO LEARN MORE
ABOUT IT.
I ALSO HOPE THAT YOUNG STUDENTS
OF HISTORY, THE PAST, BE PAY
YOUNG MEDICAL PROFESSIONALS OF
ANY DISCIPLINE IN THE MEDICAL
SPHERE OR YOUNGER SCHOLARS IN
ANY OF THE DISCIPLINES,
HUMANITIES AND SOCIAL SCIENCES,
WOULD FIND THIS COLLECTION OF
VALUE IN STUDYING THE PAST AND
UNDERSTANDING HOW INTEGRAL THIS
CHAPTER WAS IN HISTORY.
UNFORTUNATELY, BUT IT'S INTEGRAL
TO UNDERSTAND GOING FORWARD IN
OUR CULTURE.
WITH REGARD TO DIGITIZING THE
COLLECTION, LET ME SPEAK ABOUT
THAT AT A VERY HIGH LEVEL.
NLM IS ON A EXCITING TRAJECTORY
NOW TO INVEST OVER TIME IN THE
DIGITIZATION OF ITS HISTORICAL
COLLECTIONS, COLLECTIONS OVERALL
AT THE NLM, WHICH WE UNDERSTAND
IS A SINGULAR COLLECTION
SPANNING 11 CENTURIES AND COMING
FROM ALL PARTS OF THE WORLD.
THAT WILL SINGULAR COLLECTION IS
GLOBALLY APPRECIATED BY
RESEARCHERS OF MANY, MANY
DISCIPLINES AS WELL AS CURRENT
SCIENTISTS AND OTHERS.
OVER TIME, MOVING FORWARD, WE
HOPE TO DIGITIZE MUCH MORE OF
THIS COLLECTION AND MAKE IT
AVAILABLE TO THE WORLD IN
DIGITAL FORMAT FOR LOGICAL
REASONS.
THE WORLD IS INCREASINGLY
DIGITAL.
AS ALL THE PRE 7ITATIONS BEFORE
ME MADE VERY, VERY CLEAR.
AND NLM NEEDS TO BE PART OF THAT
RESEARCH ECOSYSTEM BY MAKING ITS
COLLECTIONS MORE DISCOVERABLE
AND MORE ACCESSIBLE.
AND FUNDAMENTAL WAY WE WOULD DO
THAT IS BY DIGITIZATION AND THAT
PROCESS INVOLVES THE WHOLE
ECOSYSTEM OF EXPERTS AND
EXPERTISE FROM CONSERVING THE
PHYSICAL ORIGINALS, MAKING SURE
THAT THEY ARE STABLE, PHYSICALLY
CAPABLE OF GOING THROUGH THE
DIGITIZATIONS PROCESS,
DEVELOPING WHAT WE CALL FINDING
AIDS FOR ARCHIVAL COLLECTIONS SO
RESEARCHERS CAN UNDERSTAND HOW
THEY ARE ORDERED, WHAT THE ORDER
IS OF THEM AND HOW THEY MIGHT
NAVIGATE THROUGH THEM.
AND CATALOGING IS ALSO INTEGRAL
TO THAT PROCESS.
SO ALL OF THESE EXPERTS AND
EXPERIENCE ROLE UP INTO
EXPANDING OUR DIGITAL CHORPUS AS
PARTS OF AN OVERALL DIGITAL
STRATEGY THE LIBRARY IS
GRADUALLY EMBRACING AND GOING TO
BE PURSUING OVER THE NEXT
SEVERAL YEARS.
WITH REGARD TO PRESERVING THE
ORIGINALS, THAT IS SOMETHING
THAT NLM AS A NATIONAL LIBRARY,
CERTAINLY DOES AND OUR
IMPROVEMENT OF OURS IN CALL
BUILDING 38A, BUT THE INVESTMENT
IN OUR BUILDINGS, WHERE THESE
COLLECTIONS ARE HOUSED, IS GOING
TO BE VERY, VERY IMPORTANT SO
THAT THE PHYSICAL ORIGINALS ARE
NOT REALLY PRESERVED BUT THEY
ARE REALLY PASSED DOWN FROM
GENERATION TO GENERATION.
THE GENTLEMAN WHO DEPOSITED
THESE COLLECTIONS IN THE LIBRARY
NE1973, LIKE MANY DONORS AND
MANY OTHERS WHO DEPOSITED
COLLECTIONS, PUT THEM IN THE
PUBLIC'S TRUST.
WE ARE STEWARDS OF THESE
COLLECTIONS TO TAKE CARE OF
THEM, NOT HOLD THEM CLOSE BUT
RATHER TO TAKE CARE OF THEM AND
SHARE THEM WITH THE WORLD.
AND THAT'S REALLY THE BROADER
TRAJECTORY THAT IS VERY, VERY
IMPORTANT FOR THIS COLLECTION
AND ALL THE OTHER COLLECTIONS WE
HOLD.
SO IT'S VERY EXCITING AND THIS
COLLECTION IS JUST ONE WINDOW ON
TO THAT LARGER STRATEGY.
>> THANK YOU.
>> THANK YOU FOR THE QUESTION.
>> THANK YOU DR. RESNICK.
I HAVE A COUPLE OF QUESTIONS FOR
YOU.
AND CONGRATULATIONS ON THE
ACCOMPLISHMENT OF GETTING THIS
COLLECTION DIGITIZED.
ONE OF MY QUESTIONS IS HOW LONG
DID THIS PROJECT TAKE TO GET IT
DIGITIZED?
>> SO, THANKS FOR THE QUESTION.
AS I MENTIONED IN MY TALK, THE
CLIENTS TO DIGITIZE THIS WERE
AFOOT BEFORE COVID AND COVID
INTERVENED.
THE PROCESS OF DIGITIZING TOOK
PROBABLY SEVERAL MONTHS BUT THAT
HAD ALREADY BEEN UNDERTAKEN AT
LEAST IN PART, BEFORE COVID.
COVID PUT A PAUSE ON A LOT OF
OUR OPERATIONS AS IT DID
ELSEWHERE FOR OTHER INSTITUTIONS
ELSEWHERE IN THE WORLD, OF
COURSE.
THE PROCESS OF FINALIZING THAT
DIGITIZATION AND WHAT WE CALL-IN
GESTING NLM DIGITAL COLLECTIONS,
REALLY TOOK ABOUT 6-7 WEEKS TO
TIME IT ALL PROPERLY AND MAKE
SURE IT WAS ACCURATELY DONE WITH
ALL CREDIT TO OUR TECHNICAL
TEAM, REPRESENTED BY OUR
COMPUTER SERVICES DIVISION.
I SEE MY COLLEAGUE IS THERE IN
THE ROOM.
AS WELL AS OUR ARCHIVISTS IN THE
NEW USER SERVICES AND COLLECTION
BRANCH AND OUR COLLEAGUES WHO
OVERSEE DIGITAL COLLECTION.
THAT'S WHY THIS WAS A REAL TEAM
EFFORT.
>> ONE OF THE REASONS I ASKED
THAT QUESTION IS BECAUSE AS A
OUTSIDER LISTENING IN, I HEAR
THAT THE NLM HAD THE COLLECTION
SINCE 1973 AND YET IT'S JUST
BEING DIGITIZED, WHICH IS A HUGE
ACCOMPLISHMENT MAKING IT
ACCESSIBLE TO SO MANY PEOPLE AND
SUCH AN IMPORTANT WORK TO COVER
OUR HISTORY.
AND I'M WONDERING IF THERE IS
SOME TRANSPARENCY -- LIKE THE
PRIORITIZATION PROCESS AT NLM
FOR HOW TO GET IN THE QUEUE FOR
DIGITIZATION?
IT FEELS LIKE WITHOUT THAT, WE
CLAIM IT IS SO IMPORTANT BUT IT
HAS TAKEN US 15 YEARS TO MAKE IT
ACCESSIBLE IN A DIGITAL WAY.
BUT I THINK SOME OF THE
TRANSPARENCY AROUND, AS THERE IS
SO MANY IMPORTANT THINGS AND
HERE IS SOME OF OUR PROCESSES
FOR PRIORITIZATION OF GETTING
THESE THINGS ACCESSIBLE TO
PEOPLE.
>> SURE.
THAT'S AN EXCELLENT QUESTION AND
I'M HAPPY TO SHED LIGHT ON THAT.
OUR ARCHIVISTS MAINTAIN
GENERALLY SPEAKING, A MATRIX OF
DECISION-MAKING WHAT TO SELECT
FOR DIGITIZATION.
AND THAT MATRIX AS I CALL IT, IS
FUNDAMENTALLY INFORMED BY WHAT
RESEARCHERS ARE REQUESTING TO
LOOK AT.
IF WE HAVE RESEARCHERS WHO ARE
HIGH NUMBER OF RESEARCHERS
REQUESTING SCANS FROM A
PARTICULAR COLLECTION REMOTELY
TO LOOK AT, WE WILL PRIORITIZE
THAT COLLECTION GOING FORWARD
AND PUT IT IN THE DIGITIZATION
QUEUE BECAUSE THERE IS IT A
HIGH, A MEASURABLE HIGH LEVEL OF
INTEREST IN THAT COLLECTION.
OTHER COLLECTIONS WHICH ARE NOT
REQUESTED OR NOT WELL-KNOWN, WE
UNDERSTAND, WE WORK AMONG
OURSELVES TO UNDERSTAND WHAT THE
VALUE OF THOSE COLLECTIONS MIGHT
BE HISTORICALLY BASED ON CURRENT
ISSUES IN THE SCIENCE AND
SOCIETY FOR EXAMPLE, AND WE
PRIORITIZE THOSE AS WELL.
ADMITTEDLY THERE ARE SMALLER, I
WOULD SAY LESS COMPLEX
COLLECTIONS, COMPLEX IN THE
SENSE THAT AS SOME MAY KNOW,
ARCHIVAL COLLECTIONS CAN BE MADE
UP OF LOTS OF DIFFERENT KINDS OF
MATERIALS, HANDWRITTEN, PRINTED,
PHOTOGRAPHIC, VISUAL OF ALL
KINDS.
SMALLER COLLECTIONS THAT ARE
NONE THE LEGALS IMPORTANT, THEY
MIGHT BE PRIORITIZED AS WELL TO
BE ABLE TO PUT THEM THROUGH IN
AN EFFICIENT WAY TO MAKE SURE
THEY ARE PHYSICALLY PRESERVED
AND DIGITALLY AVAILABLE.
THAT'S GENERALLY HOW I WOULD
RESPOND TO THAT.
>> YOU MENTIONED THROUGH YOUR
PRESENTATION ABOUT DISCOVER
ABILITY OF THIS AS A RESOURCE.
AND AS I WAS PREPARING FOR
TODAY, I WAITED ON THE CDC'S
SITE ABOUT THIS AND IT'S VERY
NICELY ORGANIZED SITE BUT I
COULDN'T FIND A LINK TO THE NLM
COLLECTION.
I FEEL LIKE THAT WOULD BE A HUGE
WAY IN BOTH DIRECTIONS.
SO WHEN I LANDED ON THE NLM
COLLECTION, IT WOULD HAVE
BEEN -- I KNOW YOU'RE NOT IN THE
ACCIDENT OF SORT OF CREATING BIG
WEBSITES.
THIS IS AN ARCHIVAL COLLECTION
BUT IF YOU HAVE A COUPLE OF
ADDITIONAL SORT OF LINKAGES TO
OTHER RESOURCES, AND I THINK WE
CAN -- COMING BACK TO THE CDC
RESOURCE LINKAGE WOULD BE NICE
AS WELL.
SO, THAT WOULD BE -- THAT MIGHT
BE A WAY TO GET SOME FOLKS WHO
MIGHT NOT TYPICALLY COME
DIRECTLY TO THE NLM TO FIND THAT
COLLECTION TO, ACTUALLY REALIZE
THAT IT EXISTS, WHICH WOULD BE
REALLY, REALLY GREAT, I THINK.
SO I WOULD ENCOURAGE YOU TO
THINK ABOUT THAT BECAUSE I
CERTAINLY WOULD HAVE LOVED TO
HAVE SEEN THAT.
>> YES.
I AGREE WITH YOU COMPLETELY AND
THAT IS SOMETHING I WILL TAKE UP
COOPERATION WITH MY COLLEAGUES.
DIPUT IN THE CHAT, AND I
RECOGNIZE THAT NOT EVERYBODY IS
WATCHING HAS ACCESS TO THE CHAT,
BUT WE ARE VERY FORTUNATE HERE
AT THE LIBRARY TOW HAVE A BLOG
CALLED, CIRCULATING NOW, WHICH
FEATURES VIGNETTES TO THE
COLLECTION WRITTEN BY
RESEARCHERS, MEMBERS OF OUR
STAFF, VOLUNTEERS.
AND AMONG THE CONTRIBUTESSORS TO
THE BLOG -- CONTRIBUTORS, THE
COLLEAGUES FOR THE CENTER OF
DISEASE CONTROL WROTE ABOUT THE
TUSKEGEE STUDY IN FEBRUARY OF 20
TROIS.
SO EARLY LAST YEAR.
IF YOU GO INTO GOOGLE AND LOOK
UNDER CIRCULATING NOW, TUSKEGEE,
YOU WILL FIND THIS BLOG POST T
WILL COME UP.
BUT WHAT IT DOES IS, I'M
BRINGING THIS UP BECAUSE IT
CONTAINS A NUMBER OF LINKS BACK
TO CDC AND PROVIDES OVERALL
CONTEXT AS WELL AS A LINK TO THE
COLLECTION THAT I DESCRIBED.
YOUR POINT ABOUT REACHING OUT TO
OUR COLLEAGUES IN CDC AND
ENCOURAGING THEM TO INCLUDE A
LINK TO THE COLLECTION IS ONE
THAT I'LL CERTAINLY TAKE INTO
CONSIDERATION.
>> I CAN SEE THAT THEY HAVE A
LINK TO THE NATIONAL ARCHIVES,
WHICH IS MOSTLY GRAPHIC
ARTIFACTS.
IT WOULD BE A SUPER COMP MINT TO
HAVE THE COLLECTION HAVE YOU ALL
ESTABLISHED THERE.
>> AGREED.
THANK YOU FOR POINTING THAT OUT.
APPRECIATE IT.
>> DIANE DO YOU HAVE A QUESTION.
>> YES, NANCY THANK YOU FOR YOUR
COMMENTS.
I JUST WANTED TO, SINCE WE WERE
EARLIER IN TALKING ABOUT THE
WORK OF THE BOARD OF REGENTS,
ONE AREA THAT WE HAVE JUST
STARTED IS TO CREATE AN NLM
DIGITAL STRATEGY, INCLUDING A
DIGITIZATION PROGRAM HERE AT
NLM.
SO, IF THIS SOUNDS LIKE
SOMETHING OF INTEREST TO ANY OF
YOU AND YOU WOULD LOVE TO BE ONE
OF OUR -- PART OF OUR
STAKEHOLDER GROUP FOR COMMENTS
AND TO HELP US PUT SOME
DIRECTIONS TOGETHER, LET US
KNOW.
AND WE WOULD LOVE TO HEAR FROM
YOU AND GET SOME OF YOUR IDEAS
ON THIS AS WELL.
THANK YOU.
>> SO I HAVE A QUICK QUESTION.
DR. RESNICK, THIS IS SUCH AN
IMPORTANT BODY OF WORK TO MAKE
IT AVAILABLE.
AND I'M WONDERING IF YOU CAN
SHARE WITH US AS YOUR TEAM AND
THE COLLECTIVE TEAM WERE
PROCESSING THESE ITEMS,
DESCRIBING THEM, CATALOGING
THEM, MAKING SURE THAT THEY WERE
AVAILABLE, WERE THERE ANY EITHER
METADATA SORTS OF ISSUES THAT
WERE SURPRISING OR THAT MIGHT BE
INTERESTING TO THE GROUP TO
THINK ABOUT?
OR ETHICAL PRACTICES IN ARCHIVES
THAT YOU USED WHEN PROCESSING
THE ITEMS THAT WERE IN THE
COLLECTION?
>> THANK YOU FOR THAT.
APPRECIATE IT.
SO, THE ANSWER IS YES, OF
COURSE.
SO THE TITLE OF THE COLLECTION
IS WHAT WE CALL THE PROVIDENCE
TITLE.
IT WAS A TITLE THAT WAS GIVEN
AND DEFINED BY THE AD-HOC
COMMITTEE WHEN WAS IT WAS GIVEN
TO THE NATIONAL LIBRARY OF
MEDICINE IN 1973.
HOWEVER, IF YOU VISIT THE
COLLECTION AT THE URL I
INDICATED, THE FINDING AID
AND -- FINDING IT CONTAINS A
HISTORICAL NOTE IN ITS FIRST
PARAGRAPH THAT UPDATES THE NAME
AND EXPLAINS THE HISTORY OF THE
NAME IN ORDER TO BE RESPECTFUL
OF CURRENT CONVERSATIONS WITH
VOICES OF OUR FATHER'S
FOUNDATION.
THE BIG FINDING AID PARAGRAPH
INDICATORS BEGINNING IN 1932,
THE PUBLIC HEALTH SERVICE BEGAN
A STUDY ON THE EFFECTS OF
UNTREATED SYPHILIS ON BLACK MEN
IN MAY CONCOUNTY, ALABAMA.
THE STUDY WAS OFFICIALLY NAMED
"TUSKEGEE STUDY OF UNTREATED
SYPHILIS IN THE NEGRO MALE.
IN THE 21ST CENTURY, THE TERM
PREFERRED BY THE DESIGNATEDDED
COMMUNITY VOICES OF OUR FATHERS
LEGACY FOUNDATION IS QUOTE,
UNITED STATES PUBLIC HEALTH
SERVICE STUDY OF UNTREATED
SYPHILIS IN THE NEGRO MALE.
SO WHAT THAT HIS SCORE CALL NOTE
ACKNOWLEDGELESS IS THE
COMPLEXITY OF THE HISTORICAL
CHAPTER, UNFORTUNATE NATURE OF
IT AND IT BRINGS UP TO SPEED
PROPERLY HOW THIS VERY IMPORTANT
CONSTITUENCY AS OTHERS WOULD
FEEL, WE SHOULD RENAME THE
COLLECTION ACCORDINGLY.
SO YES, REPARATIVE DESCRIPTION
IS CERTAINLY -- IT IS A MAJOR
INITIATIVE IN THE ARCHIVAL
COMMUNITY AS IT IS CERTAINLY
ALSO IN THE LIBRARY COMMUNITY
MORE BROADLY.
WE ARE VERY SENSITIVE TO THAT.
>> THANK YOU VERY MUCH.
>> THANK YOU FOR THE QUESTION.
>> I'M SKEWERS ABOUT THE COST OF
DIGITIZING THIS TYPE OF PROJECT.
SO YOU MENTIONED THAT OVER TIME
NLM WILL BE DIGITIZING OTHER
DOCUMENTS.
AND I'M WONDERING IF THE COST OF
THIS IS ALSO AN ISSUE OR A
PRIORITY?
>> THE MONETARY COST OF
ACHIEVING THIS DIGITAL PROJECT,
THERE WAS NO ISSUE ABOUT
MONETARY COST IN THE DELAY OF
IT.
AS I MENTIONED, THIS WAS A --
AMONG THE TOP COLLECTIONS TO BE
DIGITIZED AND RELEASED BEFORE
COVID.
COVID PUT A PAUSE ON A LOT OF
ACTIVITY AND IT HAPPENED THAT
THE STAKEHOLDERS WHO ARE
INTERESTED IN THIS COLLECTION
FOUND US LAST YEAR AND WE
EXPEDITED THE RELEASE OF THE
COLLECTION, WHICH FOR THE MOST
PART HAD ALREADY BEEN DIGITIZED.
SO COST WAS NOT AN ISSUE.
I'M NOT AN EXPERT ON THE COST OF
DIGITIZATION BUT WHAT I CAN SAY
IS, THE COST WILL CERTAINLY BE
AN ASPECT MOVING FORWARD AS WE
THINK ABOUT THE DIGITAL STRATEGY
FOR THE LIBRARY FOR DIGITIZING
OUR COLLECTIONS.
THERE IS REALLY A HELPFUL
ECOSYSTEM OF CULTURAL
INSTITUTIONS THAT PURSUE
DIGITIZATION, MASS DIGITIZATION
OF COLLECTIONS, FOREMOST BEING
THE NATIONAL ARCHIVES.
AND I THINK WE WOULD TALK WITH
THEM ABOUT WHAT COST ESTIMATES
THERE MIGHT BE FOR DIGITIZING
OUR ARCHIVAL COLLECTION, WHICH
IS JUST A PORTION OF THE OVERALL
COLLECTION OF THE LIBRARY.
IT'S JUST MORE COMPLICATED THAN
THE REST OF THE COLLECTION
BECAUSE OF ITS VERY NATURE BEING
ARCHIVAL AND UNIQUE MATERIAL.
SO, THE COST CAN VARY FROM HOW
MUCH A COLLECTION NEEDS TO BE
CONSERVED IN ADVANCE OF THE
DYNELLIZATION PROCESS, SO IT'S
NOT DAMAGED -- DIGITIZATION --
AND HERE I DEFER COMPLETELY TO
THE DIGITAL INFRASTRUCTURE
NEEDED TO INGEST THE COLLECTION,
SERVE THE COLLECTION.
AND I WOULD DEFER TO MY
COLLEAGUES IN THAT AREA OF THE
LIBRARY ACCORDINGLY.
SO I HOPE THAT IS JULYY -- THE
BEGINNING OF AN ANSWER TO YOUR
QUESTION.
>> THANK YOU.
I'M JUST CONCERNED ABOUT -- NOT
CONCERNED, JUST CURIOUS ABOUT
FOR THE LONG TERM FRAMING FOR
NLM IF THIS IS GOING TO BE TAKEN
INTO ACCOUNT IN SOME WAY.
SO ANYWAY, THANK YOU FOR THAT
BEGINNING RESPONSE.
>> SHOULD YOU.
IT CERTAINLY WILL BE CONSIDERED
AS AN IMPORTANT DIMENSION OF THE
DIGITIZATION EFFORT THAT WILL BE
UNDERTAKING.
>> ARE THERE OTHER QUESTIONS?
>> I SEE A QUESTION IN THE CHAT.
WHAT ABOUT THE ORIGINAL HISTORIC
DOCUMENTS AFTER THE
DIGITIZATION?
>> THANK YOU AND HELLO ZOEY,
NICE TO SEE YOU.
THANK YOU FOR YOUR QUESTION.
SO, HERE AT THE NATIONAL LIBRARY
OF MEDICINE, WE HAVE
TRADITIONALLY AND IMPORTANTLY AS
A NATIONAL LIBRARY, DIGITIZED
OUR COLLECTION AFTER IT IS
DIGITIZED, WE RETURN THE
ORIGINALS TO THE STACKS IN OUR
BUILDING SO THAT THOSE COPIES
CAN BE, THOSE ORIGINAL COPIES
CAN BE PRESERVED FOR THE NEXT
GENERATION OF CIVIL SERVANTS WHO
WILL BE AT THE LIBRARY FOR THE
NEXT GENERATION OF RESEARCHERS.
THAT IS GENERALLY BEEN THE BEST
PRACTICE.
AND THIS COLLECTION BEING, 19,
FALLS IN THAT CATEGORY AS DO THE
VAST MAJORITY OF MATERIALS WE
DIGITIZE.
WE ARE A NATIONAL LIBRARY AND
OUR CHARGE IS TO COLLECT AND
PRESERVE AND DISSEMINATE
BIOMEDICAL KNOWLEDGE OF ALL
KINDS.
AND THE PRESERVATION PART IS THE
OTHER SIDE OF THE COIN TO THE
ACCESS.
AS WE ALL KNOW, IT'S IMPORTANT
TO MAKE THIS MATERIAL PUBLICLY
AVAILABLE AS FREELY AS POSSIBLE
WITHOUT BARRIERS.
IT'S PART OF THE OPEN SCIENCE
ECOSYSTEM BROADLY UNDERSTOOD.
BUT IT'S ALSO IMPORTANT TO
PRESERVE THE ORIGINALS BECAUSE
THOSE DIGITAL COPIES THAT ARE
MADE, THEY ALSO NEED TO BE
PRESERVED THROUGH BEST PRACTICES
IN DIGITAL ECOSYSTEM.
BUT THE ORIGINALS WHICH HAVE
BEEN AROUND FOR DECADES IF NOT
LONGER, THOSE ARE IRREPLACEABLE
SO THEY ARE VERY IMPORTANT AS
HISTORICAL ARTIFACTS THAT ARE
PART OF THE BIOMEDICAL
INFORMATION ECOSYSTEM.
>> ANY OTHER QUESTIONS?
JENNIE ANYTHING ELSE FROM YOU?
>> THANK YOU, I'M GOOD.
>> THANK YOU, DR. RESNICK FOR
SHARING THAT WITH US TODAY AND
PROBABLY EXPOSE USING US TO
SOMETHING WE DIDN'T KNOW WAS
SUCH A GREAT RESOURCE AND
AVAILABLE.
SO THANK YOU.
>> THANK YOU FOR THE PRESENTLY.
THANK YOU.
>> WONDERFUL.
THANKS AGAIN DR. RESNICK FOR
THIS OUTSTANDING PRESENTATION
AND DISCUSSION.
I THINK WE ALL LEARNED A LOT AND
IT WAS A GREAT CONTEXT ABOUT
WORK THAT IS HAPPENING IN THE
NLM IN AREAS THAT WE MAY NOT
HAVE A CHANCE TO SEE AS OFTEN.
AND IT'S STILL INCREDIBLY
IMPORTANT.
SO THANK YOU.
WE ARE READY FOR COFFEE BREAK
RIGHT NOW.
AND SO, WHAT I'D LIKE TO DO IS
TO BEGIN THE BREAK AND THEN CALL
EVERYONE BACK TO START THE
SESSION AT 2:45 EASTERN TIME
WHEN WE WILL HEAR A REPORT FROM
THE OFFICE OF RESEARCH ON
WOMEN'S HEALTH.
SO, THANK YOU VERY MUCH AND
WE'LL SEE YOU SHORTLY.
>> I'M JUST CHECKING THAT
DR. CLAYTON IS ON THE LINE.
>> I'M HERE.
>> WONDERFUL, HELLO, WELCOME.
>> THANK YOU.
THANK YOU FOR HAVING ME.
>> OF COURSE.
YES, WE ARE REALLY LOOKING
FORWARD TO IT.
LET ME, WITHOUT FURTHER ADIEU,
MAKE AN INTRODUCTION.
DR. JANINE CLAYTON IS THE
ASSOCIATE DIRECTOR FOR RESEARCH
ON WOMEN'S HEALTH AND DIRECTOR
OF THE OFFICE OF RESEARCH ON
WOMEN'S HEALTH AT NIH.
SHE IS ARCHITECT OF THE NIH
POLICY REQUIRING SCIENTISTS TO
CONSIDER SEX AS A BIOLOGICAL
VARIABLE ACROSS THE RESEARCH
SPECTRUM WHICH IS PART OF NIH'S
INITIATIVE TO ENHANCE
REPRODUCIBILITY THROUGH RIGOR
AND TRANSPARENCY.
AS CO-CHAIR OF THE NIH WORKING
GROUP ON WOMEN IN BIOMEDICAL
CAREERS, WITH THE NIH DIRECTOR,
DR. CLAYTON ALSO LEADS NIH'S
EFFORTS TO ADVANCE WOMEN IN
SCIENCE CAREERS.
PRIOR TO THIS POSITION,
DR. CLAYTON WAS DEPUTY CLINICAL
DIRECTOR OF THENATIONAL EYE
INSTITUTE FOR SEVEN YEARS.
A BOARD CERTIFIED
OPTHALMOLOGIST, HER RESEARCH
INTERESTS INCLUDE AUTOIMMUNE
OCULAR DISEASES AND THE ROLE OF
SEX AND GENDER IN HEALTH AND
DISEASE.
WELCOME DR. CLAYTON.
>> THANK YOU VERY MUCH FOR
INVITING ME TO SHARE MY THOUGHTS
WITH YOU TODAY.
I BELIEVE YOU ALL ARE GOING TO
SHARE MY SLIDES?
YES?
NO?
ARE YOU GOOD FOR THAT?
>> I THINK YOUR ASSISTANT SAID
YOU WOULD SHARE THEM BUT WE CAN
BRING THEM UP FOR YOU.
>> I HAVE THEM HERE.
I'M IN AN UNUSUAL LOCATION SO
THANK YOU VERY MUCH.
IF YOU COULD SHARE THEM THAT
WOULD BE GREAT.
THANK YOU VERY MUCH FOR DOING
THAT.
AND I SEE THEM.
SO I'M GOING TO BEGIN BY SHARING
A LITTLE BIT ABOUT THE OFFICE OF
RESEARCH IN OUR HISTORY.
WE ARE AN OFFICE FOUNDED OUT OF
THE FACT THAT WOMEN WERE NOT
BEING ROUTINELY INCLUDED IN
CLINICAL RESEARCH AND THAT WAS
REALLY OUT OF CONVENTION RATHER
THAN SOME ACTIVE EXCLUSION.
THERE WASN'T A UNIFORM
RECOGNITION THAT FINDINGS FROM
MEN COULD BE APPLIED TO WOMEN IN
THE 1980S AND 1970s.
AND SO, IT WAS NOT UNTIL 1990
THAT WE WERE FOUNDED AND NOT
UNTIL 1993 THAT THE NIH
REVITALIZATION ACT WAS PASSED.
WOMEN IN UNDERREPRESENTED GROUPS
WOULD BE INCLUDED IN NIH FUNDED
CLINICAL RESEARCH UNLESS THERE
IS A SCIENTIFIC REASON NOT TO DO
SO.
SO WE FOUNDED IN 1990 AND
DEVELOPED A VARIETY OF PROGRAMS.
I'M JUST FEATURING A FEW OF THEM
HERE.
DR. VIVIAN PINN WAS THE FIRST
FULL-TIME DIRECTOR OF ORWH AND
ONE OF THE FIRST PROGRAMS SHE
DEVELOPED WAS THE SEARCH
PROGRAM, OR BUILDING
INTERDISCIPLINARY CAREERS IN
WOMEN'S HEALTH.
THE PURPOSE OF THAT PROGRAM IS
AN INSTITUTIONAL CAREER
DEVELOPMENT AWARD WAS TO EXPAND
THE CADRE OF WOMEN'S HEALTH
RESEARCHERS, AND FOCUSING ON
WOMEN'S HEALTH.
NEXT WE FORMED OUR SPECIALIZED
CENTERS OF RESEARCH EXCELLENCE
ON SEX DIFFERENCES, WHICH ARE
FEDERAL GRANTS TO LOOK
SPECIFICALLY AT SEX DIFFERENCES
AND THEN IN 2016, THE LANDMARK
POLICY WENT INTO EFFECT.
AND THEN WE FOCUSED ON UNDER
REPORTED POPULATIONS OF WOMEN,
SUCH AS REWRAP WOMEN.
OUR MISSION IS 3 FOLD.
EXPAND WOMEN'S HEALTH RESEARCH,
MAKE SURE THAT WOMEN AND
UNDERREPRESENTED GROUPS ARE
INCLUDED AND THEN ADVANCE WOMEN
IN STEM BECAUSE WE IMAGINE A
WORLD WHERE CONSIDERING SEX AS A
BIOLOGICAL BARRIER AND GENDER AS
A SOCIAL CONSTRUCT ARE
INTEGRATED ACROSS THE CONTINUUM
FROM THE LAB TO THE CLINIC AND
BEYOND, A WORLD WHERE EVERYONE
RECEIVES EVIDENCE-BASED
DIAGNOSTIC TREATMENT AND CARE,
TAILORED TO ONLY CIRCUMSTANCES
GOALS AND NEEDS AND A WORLD
WHERE ALL WOMEN IN SCIENCE REACH
THEIR FULL POTENTIAL.
TO DO THAT, WE KNOW THAT
INCLUSION IS CRITICAL TO OUR
BASE AND WE'D LIKE TO SAY
INCLUSION IS IN OUR DNA.
AND THIS IS RELATED TO EFFORTS
RELATED AROUND RIGOR AND
REPRODUCIBILITY.
BECAUSE WE KNOW THAT INSIGHTS
FROM THOSE AFFECTED BY THE
DISEASE UNDERSTUDY INFORMED THE
CARE OF THOSE INDIVIDUALS AND
SUPPORT THE RIGOR AND
REPRODUCIBILITY OF OUR WORK.
I MENTIONED ABOUT THE REVITAL
ACT AND I WANT TO FAST FORWARD
TO THE 21ST CENTURY CURES ACT.
THAT ACT REQUIRED THAT WE
INCLUDE INDIVIDUALS OF ALL AGES
FROM THE YOUNGEST YOUNG TO THE
OLDEST OLD.
IT CREATED A PATH FOR INCLUDING
PREGNANT AND LACTATING PEOPLE.
WE STILL HAVE A LOT OF PROGRESS
TO DO THERE.
IT ALSO ADDED A REQUIREMENT THAT
NIH DEFINED APPLICABLE PHASE III
CLINICAL TRIALS WILL REPORT
RESULTS INTO CLINICALTRIALS.GOV.
THE REASON THIS IS SO IMPORTANT
IS THAT CT.GOV IS A CRITICAL
COMPONENT IN FORMING THE PUBLIC
ABOUT CLINICAL TRIALS THAT ARE
ONGOING.
BUT IT'S ALSO THE LAST AREA THAT
NIH HAS IN TERMS OF OUR
OVERSIGHT ABOUT THE RESULTS OF
THOSE CLINICAL TRIALS.
IN THE PUBLIC DOMAIN, EDITORS
AND PUBLISHERS ARE GAIL COOPER
THAT CONTROL WHAT COMES OUT INTO
THE PUBLIC DOMAIN BUT THIS IS A
REALLY IMPORTANT ADVANCE FROM
THE 21ST CENTURY CURES ACT.
I WANT TO HIGHLIGHT THIS
PUBLICATION FOR YOU.
STACEY GELLER AND HER TEAM HAVE
BEEN LOOKING AT FEDERALLY FUNDED
CLINICAL TRIALS FOR OVER 15
YEARS.
SHE HAS BEEN EXAMINING HOW OFTEN
THOSE STUDIES RESULT IN
PUBLICATIONS IN THE LITERATURE
WHERE THE RESULTS ARE SEPARATED
BY SEX OR GENDER.
AND WHAT SHE FOUND FOR THE FIRST
TIME IN THE MOST RECENT ANALYSIS
WAS A SIGNIFICANT INCREASE IN
THE PROPORTION OF RANDOMIZED
CONTROL TRIALS PROVIDING
OUTCOMES BY SEX, RACE AND
ETHNICITY COMPARED TO PREVIOUS
YEARS.
THE DATA IS SHOWN HERE AND YOU
CAN LOOK AT THE TOP YOU'LL SEE
SHE STARTED THIS IN 2004.
SHE REPEATED IN 2009.
2015 AND 2021.
THIS TABLE LOOKS AT ENROLLMENT
BY SEX AT THE TOP AND YOU CAN
SEE THE ENROLLMENT IS PRETTY
STABLE AT 43% IN 2004, 44% IN
2021 BECAUSE ENROLLMENT OF WOMEN
IN CLINICAL TRIALS HAS BEEN
ELEVATED TO THIS LEVEL FOR MANY
YEARS.
SO THAT TREND IS NOT REALLY
CHANGED.
AND WE EXPECT TO SEE THAT.
HOWEVER, IF YOU LOOK DOWN IN THE
SECTION WHERE THE BLUE BOX IS
LOCATED, THIS REPORTS BY SEX.
AND YOU CAN SEE BACK IN 2004,
ONLY 13% OF THE TRIALS, THESE
ARE PHASE III CLINICAL TRIALS,
REPORTED RESULTS BY SEX.
AND IN 2009, THAT INCREASED TO
25%, WHICH IS A GOOD TREND BUT
THEN 2015, WE SAW A PLATEAUING
OF THAT AT 26%.
WE ARE REALLY EXCITED TO SEE IN
2021, THAT IS UP TO 43% OF THESE
PHASE III CLINICAL TRIALS ARE
REPORTING ANALYSIS BY SEX AND
THAT IS SIGNIFICANT INCREASE.
NEXT SLIDE, PLEASE.
ALSO I WANT TO HIGHLIGHT THAT WE
FOUND AND THEY FOUND, AND WE ARE
SHARING WITH YOU THEIR DATA, AN
INCREASE IN REPORTING OF RESULTS
FOR DIFFERENT RACIAL AND ETHNIC
GROUPS AS WELL.
OVER THE SAME TIME PERIOD FROM
8.7% IN 2004 TO 26.9% IN 2021.
SO WITH ELEVATING THESE ISSUES
AND THE IMPORTANCE OF LOOKING AT
OUTCOMES IN DIFFERENT
POPULATIONS, WE HAVE SEEN
INCREASES BOTH IN REPORTING BY
SEX AND RACE AND ETHNICITY.
NEXT SLIDE.
SO THE SEX IS A BIOLOGICAL
VARIABLE POLICY IN A NUTSHELL
STATES THAT WE EXPECT THAT SEX
AS A BIOLOGICAL VARIABLE WILL BE
FACTORED IN TO RESEARCH DESIGN,
ANALYSIS AND REPORTING FOR
VERTEBRATE ANIMAL AND HUMAN
STUDIES.
WE ALSO AS PART OF THE POLICY,
STATE THAT STRONG JUSTIFICATION
FROM THE LITERATURE, PRELIMINARY
DATA OR OTHER RELEVANT
CONSIDERATIONS MUST BE PROVIDED
FOR APPLICATIONS PROPOSING TO
STUDY ONLY ONE SEX.
SINGLE SEX STUDIES ARE
PERMITTED.
THEY JUST REQUIRE A
JUSTIFICATION AT THIS TIME.
THAT WENT INTO EFFECT IN 2016
AND NEXT.
AND OVER THE YEARS, NIH
SUPPORTED RESEARCH AS WE KNOW,
HAS PLAYED A CRITICAL ROLE IN
THE HEALTH OF WOMEN.
I WANT TO GIVE KUDOS TO ALL OF
THE 27 INSTITUTES AND CENTERS
WHO HAVE BEEN SUPPORTING NIH
CLINICAL RESEARCH FOR MANY YEARS
AS WELL AS THE OFFICE OF THE
DIRECTOR.
ON THE TOP LEFT YOU SEE THE
WOMEN'S HEALTH INITIATIVE WHICH
HAS BEEN AN INCREDIBLE
INVESTMENT IN WOMEN'S HEALTH
RESEARCH THAT WAS INITIATED BY
DR. BER DEAN HEALEY WHEN SHE WAS
THE NIH DIRECTOR.
SIMILARLY THE STUDY OF WOMEN'S
HEALTH ACROSS THE NATION HAS
BEEN A LONGITUDINAL STUDY THAT
LOOKED AT MID LIFE WOMEN AND
THAT IS LED BY THE NATIONAL
INSTITUTE ON AGING.
WE AND OTHERS ARE PLEASED TO
SUPPORT THAT.
YOU KNOW THAT THE BASIC SCIENCE
RESEARCH THAT WAS SUPPORTED BY
NIH LED TO THE DEVELOPMENT OF
THE HPV VACCINE AND ALSO LED TO
THE DEVELOPMENT OF THE FIRST
EVER FDA APPROVED TREATMENT FOR
POSTPARTUM DEPRESSION, NOT THE
SAME BASIC SCIENCE BUT BASIC
SCIENCE RESEARCH HAS LED TO
THESE IMPORTANT ADVANCES IN THE
CLINICAL REALM.
IN AUTOIMMUNE DISEASE TREATMENT,
ON THE FAR RIGHT THERE, IT WAS
NIH SUPPORTED BASIC SCIENCE THAT
LED TO THE IDENTIFICATION OF
JACK INHIBITORS AS A POTENTIAL
PATHWAY FOR TREATMENT OF
AUTOIMMUNE DISEASE.
AND THEN RIGHT THERE IN THE
MIDDLE, WE SEE THE KNOCKOUT
MOUSE PROGRAM AND THESE ARE
EXAMPLES OF OUR BASIC SCIENCE
STUDIES THAT ARE BEING APPLIED
TO WOMEN'S HEALTH ISSUES.
NEXT SLIDE, PLEASE.
YOU ARE THE FIRST GROUP TO HEAR
ME TALK ABOUT THE NIH-WIDE
STRATEGIC PLAN FOR RESEARCH ON
THE HEALTH OF WOMEN IN
2024-2028.
IT IS BEING LAUNCHED TOMORROW.
SO I THOUGHT I WOULD GIVE YOU
JUST A SNEAK PEEK OF SOME OF THE
KEY ITEMS.
IT'S A ROADMAP FOR NIH.
IT'S NOT AN ORWH STRATEGIC PLAN.
IT'S NIH STRATEGIC PLAN.
IT'S AN ENTERPRISE WIDE ROADMAP
TO GUIDE OUR EFFORTS.
THREE GUIDING PRINCIPLES.
FIRST, CONSIDERING A COMPLEX
INTERSECTION AMONG MULTIPLE
FACTORS THAT EFFECT THE HEALTH
OF WOMEN INCLUDING DIVERSE
POPULATIONS OF WOMEN IN CLINICAL
RESEARCH AND THE INTEGRATING
PERSPECTIVES FROM DIVERSE
DISCIPLINES, DIFFERING SKILLS,
KNOWLEDGE, EXPERIENCE,
SUPPORTING OUR WORKFORCE.
AND THEN FIVE STRATEGIC GOALS IN
THE STRATEGIC PLAN.
SO STAY TUNED FOR TOMORROW WHEN
IT WILL BE OFFICIALLY LAUNCHED.
AND THIS IS HOW WE ACHIEVE OUR
GOALS.
COLLABORATION IS KEY TO OUR
EFFORTS.
WE WORK IN PARTNERSHIP WITH ALL
OF THE INSTITUTES AND CENTERS
THROUGH THE COMMITTEE FOR
RESEARCH ON WOMEN'S HEALTH AND
OTHER ENTITIES TO DRIVE
SYNERGISTIC RESEARCH PRIORITIES
THROUGH WORKING GROUPS, FUNDING
OPPORTUNITIES, TO
PRIORITY-SETTING EXERCISES,
WORKSHOPS AND THE LIKE.
AND THAT IS THE ONLY WAY WE CAN
ACHIEVE THAT AMBITIOUS VISION.
AND WE KNOW THAT MULTIPLE
FACTORS STARTING WITH BIOLOGY,
BUT BEYOND BIOLOGY, AFFECTS OUR
HEALTH.
WE HAVE TO CONSIDER SOCIAL AND
ENVIRONMENTAL EXPOSURES, SOCIAL
DETERMINANTS OF HEALTH,
EDUCATION, AND AS WELL AS THE
BIOLOGIC FACTORS THAT NIH HAS
BEEN SUPPORTING RESEARCH FOR SO
MANY YEARS.
AND, WE HAVE TO THINK ABOUT THIS
IN THE CONTEXT OF THE FULL LIFE
FORCE.
WE KNOW THAT AN EARLY LIFE
EXPOSURE CAN EFFECT HEALTH LATER
IN LIFE.
FOR EXAMPLE, IN OUR CASE, PRE
ECLAMPSIA DURING PREGNANCY
PREDICTS RISK OF CARDIOVASCULAR
DISEASE LATER IN LIFE.
AND THAT'S NOT 25 YEARS LATER.
NHLBI FUNDED RESEARCH, THAT IS
THREE YEARS LATER THOSE WOMEN
HAVE INCREASED RISK FOR
HYPERTENSION.
BY KNOWING THAT, WE CAN TAKE A
PRO VENTIVE APPROACH AND CONNECT
THOSE DOTS ACROSS THE LIFE
COURSE.
THESE ARE OUR MAJOR PROGRAMS, I
ALREADY TOLD YOU ABOUT THE BIRCH
PROGRAM AND THE SCORE AND WE
PARTNER WITH MULTIPLE INSTITUTES
AND CENTERS.
WE CREATED THE FIRST EVER RO ONE
FUNDING OPPORTUNITY FOCUSED ON
THE INTERSECTION OF SEX AND
GENDER SO BOTH BIOLOGY AND
SOCIAL FACTORS IN HEALTH AND
DISEASE.
AND THEN OUR MOST RECENT FUNDING
OPPORTUNITY IS R01 AND R21
FOCUSED ON UNDERSTANDING CHRONIC
CONDITIONS THAT ARE UNDERSTUDIED
AMONG WOMEN.
THAT IS A RESULT OF A 2021
WOMEN'S HEALTH CONFERENCE REPORT
WHICH WE HELD IN RESPONSE TO A
CONGRESSIONAL REQUEST TO ADDRESS
MATERNAL MORTALITY IN THIS
COUNTRY.
WE HAVE THE HIGHEST RATE OF
HIGH-INCOME COUNTRIES.
STALLED CERVICAL CANCER SURVIVAL
RATES AS WELL AS EXPANDING
CHRONIC CONDITIONS IN WOMEN.
AND WE DID SO AND AS A RESULT,
WE HAD THESE FUNDING
OPPORTUNITIES WITH OUR ICO
PARTNERS.
I MENTIONED THE LIFESPAN AND I
CANNOT SAY ENOUGH HOW IMPORTANT
IT IS ESPECIALLY TODAY TO
PRIORITIZE WOMEN'S HEALTH
RESEARCH THAT ADDRESSES THE FULL
LIFE COURSE.
TO ENHANCE OUR ABILITY TO
IMPROVE THE HEALTH OF ALL WOMEN.
MENOPAUSE STRATEGIES FINDINGS
LASTING ANSWERS FOR SYMPTOMS AND
HEALTH TRIALS INCLUDED
RANDOMIZED CONTROL TRIALS FOR A
VARIETY OF INTERVENTIONS FOR
MENOPAUSE SYMPTOMS THAT WERE
COFUNDED BY MULTIPLE ICOs,
INCLUDING ORWH AND REALLY
IMPORTANT THAT IN A MEDLINE PLUS
MAGAZINE ARTICLE FOCUSED ON
MENOPAUSE, WHAT YOU NEED TO
KNOW.
DIRECTED TOWARDS THE PUBLIC
BECAUSE WE KNOW THERE IS A DIRTH
OF INFORMATION, EVIDENCE-BASED
INFORMATION AVAILABLE TO THE
PUBLIC, WHO HAS MANY, MANY
QUESTIONS ABOUT MENOPAUSE.
WE FEATURED NIH MENOPAUSE
RESEARCH IN OUR WOMEN'S HEALTH
AND FOCUS QUARTERLY PUBLICATIONS
LAST YEAR AND ALL OF THIS
INFORMATION IS AVAILABLE ON LI
LINE.
MUCH OF IT IS AVAILABLE ON OUR
MENOPAUSE WEB PAGE WHICH IS
FEATURED HERE LINKING TO MY
METAPLAN, A WEBSITE SUPPORTED BY
NIA LED INVESTIGATORS WHO ALLOW
THIS WEBSITE TO PUT IN YOUR
SYMPTOMS AND CREATE A
PERSONALIZED COLLECTION OF THE
EVIDENCE RELATED TO
INTERVENTIONS THAT MIGHT BE
USEFUL FOR YOUR OWN SYMPTOMS.
SO THAT ALLOWS INDIVIDUALS TO
DOWNLOAD THAT INFORMATION AND
TAKE IT TO THEIR HEALTH CARE
PROVIDER SO THEY ARE BETTER
EQUIPPED AND CAN ASK INFORMED
QUESTIONS.
A VARIETY OF OTHER LINKS ARE
AVAILABLE ON OUR WEB PAGE AS
WELL.
NEXT.
AS I SHIFT INTO THIS NEXT
SECTION, I AM REALLY EXCITED TO
SHARE WITH YOU AND DR. SHERRY
HAS BEEN AN INVALUABLE PARTNER
AS WELL AS OTHER NLM COLLEAGUES
AS WE MOVE INTO A NEW PHASE OF
OUR WORK.
IN NOVEMBER, PRESIDENT JOE BIDEN
AND THE 1st LADY ANNOUNCE
THE FIRST-EVER WHITE HOUSE
INITIATIVE ON WOMEN'S HEALTH
RESEARCH.
I WAS HONORED TO BE THERE IN THE
OVAL OFFICE ALONG WITH
DR. MONICA BETTER FOLEY,
SECRETARY AND OTHER LEADERS
FEATURED IN THE SLIDE, FOR THE
SIGNING OF THIS HISTORIC
PRESIDENTIAL MEMO.
NEXT.
AND THE PRESIDENT FOLLOWED UP
WITH THAT WITH AN EXECUTIVE
ORDER.
I HAVE TO HIGHLIGHT FOR YOU HERE
JUST SOME OF THE HIGH-LEVEL
TOPICS THAT THE WHITE HOUSE
INITIATIVE IS SET TO ADDRESS.
THE LANGUAGE THAT IS BEING USED
IS THAT THIS INITIATIVE WILL
FUNDAMENTALLY CHANGE THE WAY WE
DO WOMEN'S HEALTH RESEARCH FROM
IDENTIFYING OPPORTUNITIES FOR
ADDITIONAL INVESTMENTS TO
SETTING RESEARCH PRIORITIES,
DEVELOPING PUBLIC/PRIVATE
PARTNERSHIPS, TO DRIVE
INNOVATION, INCREASE PUBLIC
AWARENESS, HEALTH DISPARITIES,
THROUGH POLICY RECOMMENDATIONS
AND OTHER STEPS AROUND DATA
REPORTING AND RESEARCH METHODS
AND IN THE END, TO THE BOTTOM
RIGHT, INCREASING PUBLIC
AWARENESS FOR THE NEED FOR
GREATER INVESTMENT AND ATTENTION
TO WOMEN'S HEALTH RESEARCH.
NEXT SLIDE.
AND THE EXECUTIVE ORDER THAT
FOLLOWED THE PRESIDENTIAL MEMO
IS EXECUTIVE ORDER 14120 SIGNED
IN MARCH.
AGAIN, DELIGHTED TO BE THERE
WITH THE PRESIDENT, THE FIRST
LADY, THE VICE PRESIDENT AND
OTHERS.
AND THE FOUR DOMAINS IN THE
EXECUTIVE ORDER ARE,
PRIORITIZING INVESTMENTS IN
WOMEN'S HEALTH RESEARCH ACROSS
FEDERAL AGENCIES.
INTEGRATING WOMEN'S HEALTH
RESEARCH INTO THE FEDERAL
RESEARCH PORTFOLIO.
GALVANIZING NEW RESEARCH ON
WOMEN'S MID LIFE HEALTH.
AND ASSESSING UNMET NEEDS TO
SUPPORT WOMEN'S HEALTH RESEARCH.
AND SO WE HAVE BEEN WORKING
ACROSS NIH AND WITH OUR FEDERAL
PARTNERS TO EXECUTE ON THE
PRESIDENT'S DIRECTIVE AND THIS
IS THE MOST COMPREHENSIVE SET OF
EXECUTIVE ACTIONS THAT HAVE EVER
BEEN TAKEN TO EXPAND AND IMPROVE
RESEARCH ON WOMEN'S HEALTH.
HERE ARE SOME OF THE U.S.
GOVERNMENT PARTNERS THAT ARE
PART OF THE WHITE HOUSE WOMEN'S
HEALTH RESEARCH INITIATIVE AND
IN ADDITION, THE PRESIDENT IN A
STATE OF THE UNION ADDRESS
ANNOUNCED A CALL FOR 12 BILLION
DOLLARS OF FUNDING TO DEVELOP
AND SUPPORT FOR AN NIH CENTRAL
FUND IN WOMEN'S HEALTH RESEARCH
TO ADVANCE NEW,
INTERDISCIPLINARY WOMEN'S HEALTH
RESEARCH FOR TRANSFORMATIVE
RESEARCH AND DEVELOPMENT IN
WOMEN'S HEALTH.
SO I AM LOOKING FORWARD TO
CONTINUING TO WORK WITH MY U.S.
GOVERNMENT AND AGENCY PARTNERS
AS WE DEVELOP PLANS TO IMPLEMENT
THE EXECUTIVE ORDER.
SOME OF THE STEPS THAT NIH HAS
TAKEN THAT I'D LIKE TO SHARE
WITH YOU AT THE VERY TOP, WE
HAVE CREATED A NOTICE OF SPECIAL
INTEREST LINKING TO EVERY SINGLE
NIH PARENT FUNDING OPPORTUNITY.
R01s, Ks, Ts, Fs, SMALL
BUSINESS INNOVATION, EVERY
PARENT IS LINKED TO THIS
DECLARING OUR INTERESTS IN
FUNDING WOMEN'S HEALTH RESEARCH
ACROSS A WIDE VARIETY OF FUNDING
MECHANISMS, A WIDE VARIETY OF
TOPICS AND CREATING ESPECIALLY
THIS DEDICATED FRONT DOOR TO NIH
FUNDING OPPORTUNITIES.
WE ARE WORKING TO IDENTIFY AND
DEVELOP NEW COMMON DATA ELEMENTS
RELATED TO THE HEALTH OF WOMEN
AND THESE WILL HELP SUPPORT
INTEROPERABILITY OF DATASETS,
HELP RESEARCHERS SO THEY CAN
CHERYL AND COMBINE DATASETS AND
WE WANT TO MAKE SURE THAT THEY
ADDRESS THE IN THIS DEALTY OF
THE DATASETS AS WELL.
RELATED TO PRIVATE SECTOR
INNOVATION, WE HAVE OUR SMALL
BUSINESS INNOVATION RESEARCH
PROGRAM, SBIR, AND OUR SMALL
BUSINESS TECHNOLOGY TRANSFER
PROGRAM.
WE ARE COMMITTING TO FURTHER
INCREASING OUR INVESTMENT IN
THAT SPACE BY 50% FOR RESEARCH
RELEVANT TO THE HEALTH OF WOMEN.
SO PLEASE HELP US GET THE WORD
OUT TO OUR COLLEAGUES SO THEY
CAN APPLY FOR SBIR AND STPR
PROGRAMS.
WE HAVE ANNOUNCED NIH'S AND THE
FEDERAL GOVERNMENT'S FIRST EVER
PATHWAYS TO PREVENTION SERIES ON
MENOPAUSE AND THE MANAGEMENT OF
MENOPAUSE RELATED ISSUES.
THE PATHWAYS TO PREVENTION
PROGRAM IS A VERY CLEAR RIGOROUS
PROGRAM THAT IS LED BY THE
OFFICE OF DISEASE PREVENTION AND
IN COLLABORATION WITH US IT
STARTS WITH SYSTEMATIC EVIDENCE
REVIEW AND THERE IS A WORKSHOP
THAT WILL BE HOSTED BY FEDERAL
PARTNERS THAT WILL BE ONE OF THE
SECOND STEPS ON THIS PATHWAYS TO
PREVENTION SERIES.
IN ADDITION, NI WHY.
HD IS LEADING THE WAY BY
LAUNCHING A NEW INITIATIVE TO
DETECT DEDICATED TO BIOMARKER
DISCOVERY AND VALIDATION TO HELP
IMPROVE OUR ABILITY TO PREVENT,
DIAGNOSE AND TREAT CONDITIONS
THAT AFFECT WOMEN UNIQUELY AND
THEY ARE DOING THAT IN THE SPACE
OF ENDOMETRIOSIS WITH A PROGRAM
CALLED, ACT ENDO.
THAT IS ON THE STREET NOW AND
YOU MAY KNOW THAT ENDOMETRIOSIS
IS A PARTICULARLY PAINFUL
CONDITION IN MORE COMMON THAN
PEOPLE REALIZE AND WOMEN CAN
WAIT UP TO 7-10 YEARS TO GET
THIS DIAGNOSED.
SO WE ARE REALLY LOOKING FORWARD
TO ADVANCEMENTS IN BIOMARKERS
AND TREATMENT.
NEXT SLIDE, PLEASE.
I'M ALSO REALLY EXCITED AND
THRILLED TO SHARE WITH YOU THESE
ARE NATIONAL LIBRARY OF
MEDICINE'S SLIDES ON DISCOVERING
WOMEN'S HEALTH RESEARCH.
DR. SHERRY IS PARTNERING WITH
ORWH AND THE NIH OFFICE OF THE
DIRECTOR TO CREATE A NEW
DISCOVERY SERVICE FOR WOMEN'S
HEALTH RESEARCH.
IN DIRECT RESPONSE TO ORDER
14120.
THIS WILL INNOVATE ACROSS A WIDE
VARIETY OF DOMAINS AND IT WILL
BE A PORTAL ACCESSED THROUGH THE
ORWH WEBSITE OR THE NLM WEBSITE
TOGETHER.
AND YOU CAN SEE HERE, WE ARE IN
OUR FIRST DEVELOPMENT PHASE AND
WE ARE FRAMING THE DEVELOPMENT
OF THAT INFRASTRUCTURE AND
INTERNAL SYSTEM, NLM IS WORKING
TO CREATE THIS TOPICAL
COMAINFRAME WORK SO WE CAN
ACCESS A WIDE VARIETY OF
RESOURCES FROM PUBMED CENTRAL TO
REPORTER TO CRITICAL TRIALS.GOV,
TO ACCESS TO OUR CDEs OR SOME
OF THE RCDC CATEGORIES AS WELL
AS OTHER DATASETS AND OTHER NIH
PROGRAMS.
THE GOAL HERE IS TO BRING THAT
INFORMATION TOGETHER TO MAKE IT
AVAILABLE TO VARIOUS GROUPS AND
HIGHLIGHT AND ENHANCE THE
OPPORTUNITY TO UTILIZE THIS DATA
AND THESE RESOURCES TO SUPPORT
THE IMPROVEMENT OF WOMEN'S
HEALTH RESEARCH.
NEXT SLIDE, PLEASE.
AND SO IT HAS BEEN REALLY MY
PLEASURE TO WORK WITH DR. SHERRY
AND DR. FAUCI AND OTHERS ON
THIS.
THIS WILL BE A MULTI-PHASE
PROJECT AND TODAY, THIS WEEK, WE
ANNOUNCED THE NATIONAL WOMEN'S
HEALTH WEEKEND, THIS IS ONE OF
OUR EXCITING NIH ANNOUNCEMENTS
AS PART OF NATIONAL WOMEN'S
HEALTH WEEK AND WE LOOK FORWARD
TO DRILLING DOWN ON THIS IN THE
FUTURE.
I MENTIONED MENOPAUSE.
THAT IS ONE OF THE FIRST TOPICS
THAT WE ARE WORKING ON TOGETHER
WITH NLM.
AUTOIMMUNE DISEASES IS ANOTHER
THAT EFFECTS 8-10 PEOPLE ARE
WOMEN, AND POLYCYSTIC OVARIAN
SYNDROME IS A LEADING CAUSE OF
ENDOCRINE DISORDERS IN WOMEN.
AND I LOOK FORWARD TO REPORT
PROGRESS ON THIS WITH YOU WHERE
WE HAVE OUTLINED HERE IN THE
SLIDE OUR PROPOSED FUTURE FOR
DISCOVER OWHR.
NEXT SLIDE.
ONE OF THE AREAS THAT YOU HEARD
ABOUT A COUPLE OF TIMES IS
INNOVATION.
AND JANEY AND I PUBLISHED A
PIECE ON THE GENDER HEALTH
INNOVATION GAP RECENTLY WHERE WE
JUST -- HERE WE DEFINED THE
SCOPE OF WOMEN'S HEALTH RESEARCH
AS DISEASES OR CONDITIONS THAT
OCCUR ONLY IN WOMEN, LIKE
MENOPAUSE OR ENDOMETRIOSIS.
MOSTLY IN WOMEN, AUTOIMMUNE
DISEASE.
OR MANIFEST DIFFERENTLY IN
WOMEN, LIKE HEART DISEASE AND
CARDIOVASCULAR DISEASE.
AND THERE IS AN INNOVATION GAP
WHERE THERE IS LESS OF A FOCUS
IN THE BUSINESS SECTOR, PRIVATE
SECTOR ON WOMEN'S HEALTH.
SO I WANT TO MAKE SURE YOU'RE
AWARE OF THAT.
ONE OF THE WAYS WE ARE
ADDRESSING THAT, CONGRESS
DECIDED TO FORM A NEW OFFICE OF
AUTOIMMUNE DISEASE RESEARCH
WITHIN THE OFFICE OF RESEARCH ON
WOMEN'S HEALTH.
AND APPROPRIATED 10 MILLION
DOLLARS IN FUNDS LAST YEAR TO DO
SO.
NEXT, THEY GAVE US A 6-FOLD
CHALLENGE TO BE ABLE TO CREATE A
MULTIIC STRATEGIC RESEARCH PLAN,
ADDRESS AREAS OF INNOVATION,
COORDINATING RESEARCH ACROSS NIH
AROUND AUTOIMMUNE DISEASE AND
CREATING A REPOSITORY.
SO I'M THRILLED TO TELL YOU LAST
YEAR, WE SUPPORTED RESEARCH ON
MULTIPLE AUTOIMMUNE DISEASES,
STRA MURALY, EXTRAMURALLY, WE
SUPPORTED TRAINEES AS YOU CAN
SEE HERE, AND OUR FIRST FUNDING
OPPORTUNITY IN COLLABORATION
WITH NYE ALPS AND NIHS WAS
AROUND THE ENVIRONMENT OR THE
EXACT PLAN PROGRAM.
SO WE ARE SUPPORTING FUNDING,
PLANNING GRANTS FOR LOOKING AT
THE EXPOSOME AND THE
ENVIRONMENTS EFFECT ON
AUTOIMMUNE DISEASE WITH MULTIPLE
INSTITUTES AND CENTERS BOTH
INTRAMURALLY AND EXTRAMURALLY.
NEXT SLIDE.
AND RELATED TO INNOVATION WHICH
IS SO IMPORTANT FOR ALL THAT WE
DO, OUR BIRCH PROGRAM AND OUR
SCORE PROGRAM, ARE COLLABORATING
HERE AT THE HARVARD LOCATIONS.
THEY ARE COLLABORATING AROUND
SEX DIFFERENCES AND MAJOR
DEPRESSION AND LOOKING AT THE
IMPACT OF PRENATAL STRESS-IMMUNE
AND AUTONOMIC DYSREGULATION AND
THEY HAVE CREATED A PROGRAM
CALLED, BUILDING A TRANSLATIONAL
WORKFORCE INNOVATION NETWORK.
THROUGH THAT PROGRAM, THEY ARE
PROMOTING ACADEMIC INDUSTRY
PUBLIC/PRIVATE PARTNERSHIPS FOR
THOSE BIRCH SCHOL ARD AND SCORE
INVESTIGATORS.
THEY ARE SUPPORTING
ENTREPRENEURSHIP AND HAVE A
SPECIFIC CURRICULUM THEY HAVE
DEVELOPED THERE WITH A DESIGN TO
BE ABLE TO EQUIP THOSE
RESEARCHERS TO BE ABLE TO MOVE
INTO PRODUCT DEVELOPMENT AND THE
PRIVATE SECTOR.
OUR SPECIALIZED CENTERS OF
RESEARCH EXCELLENCE ON SEX
DIFFERENCES ARE INVESTIGATING A
WIDE VARIETY OF TOPICS FROM SEX
DIFFERENCES TO SEX DIFFERENCES
IN ADDICTION AND STRESS RELATED
DISORDERS, SUPPORTED BY NIDA,
WITH ENDOCRINE DISRUPTION AND
AGING AND ALZHEIMER'S, NIH
SUPPORTED SEX DIFFERENCES IN THE
BRAIN, GUT CONNECTION AND THE
MICROBIOME SUPPORTED BY NIDDK.
AND A VARIETY OF OTHER TOPICS
INCLUDING CARDIOMETABOLIC
HEALTH.
OUR NEWEST SCORE IS AUGUSTA
UNIVERSITY AND IT INVOLVES THREE
UNIVERSITIES, FOUR COLLEGES AND
10 DEPARTMENTS.
OUR SCORE PROGRAM REQUIRES BASIC
SCIENCE, CLINICAL RESEARCH,
TRANSLATIONAL RESEARCH, A CAREER
ENHANCEMENT CORE AND
ADMINISTRATIVE CORE AND THIS
JUST HIGHLIGHTS HOW THOSE
PROJECTS ARE WORKING TOGETHER IN
ONE PARTICULAR SITE.
THEY ARE LOOKING AT IMPROVING
AWARENESS OF WOMEN WITH
HYPERTENSION, SO THEY HAVE A
COMMUNITY I-BASED CORE.
THEY ARE LOOKING AT MECHANISMS
DRIVING ENHANCED SUSCEPTIBILITY
OF FEMALERS HAVES MALES PROVIDED
A HIGH-FAT DIET WITH INCREASING
BLOOD PRESSURE.
THAT'S THE BASIC SCIENCE
COMPONENT.
THEY ARE ALSO LOOKING AT THE
EFFECT OF OBESITY AND LEPTIN ON
THE DEVELOPMENT OF IMMUNE SYSTEM
DYSFUNCTION AND HYPERTENSION IN
FEMALES WITH LUPUS.
SEX DIFFERENCE THERE.
FIANTY% OF PEOPLE AFFECTED BY
LINE UP US IS WOMEN.
AS WELL AS INNATE IMMUNE
MEDIATED CHANGES IN RENAL
FUNCTION.
SO A FEMALE IN PARTICULAR
DISPROPORTIONATE IN WOMEN
AUTOIMMUNE DISEASE AND THEN
SHOWS UP DIFFERENTLY IN WOMEN.
THIS HYPERTENSION RELATED TO
RENAL DYSFUNCTION WITH LUPUS.
NEXT SLIDE.
SO THAT GIVES YOU AN EXAMPLE OF
SOME OF THE EFFORTS THAT WE ARE
SUPPORTING WITH OUR ICO
PARTNERS.
ANOTHER EXAMPLE THAT I WANT TO
SHARE WITH YOU AGAIN IN THE
INNOVATION SPACE, GLOBALLY, WE
COLLABORATED WITH THE BILL AND
MELINDA GATES FOUNDATION TO HOST
THE INNOVATION EQUITY FORUM LAST
YEAR.
THAT INCLUDED OVER 250
INDIVIDUALS FROM OVER 50
COUNTRIES AND WE MAPPED OUT IN
THIS WOMEN'S HEALTH INNOVATION
OPPORTUNITY MAP, USING CRITERIA
THAT THE -- HAD TO BE
PRIORITIZED FOR POTENTIAL FOR
IMPACT, READY TO MOVE FORWARD IN
5-10 YEARS, INNOVATION, THEY HAD
TO BE TOPICS THAT MATTER TOO
WOMEN.
THEY HAD TO ADDRESS EQUITY.
WE CALL THOSE THE PRIME CRITERIA
AND ALONG THOSE 10 DOMAINS YOU
CAN SEE IN THOSE PINK AND BLUE
RECTANGLES IN THE CENTER, WERE
OPPORTUNITIES THAT HAVE BEEN
MAPPED OUT AS HIGH RETURN FOR
WOMEN'S HEALTH.
IT LOOKS LIKE SOMEBODY IS
MENTIONING THERE IS AN ISSUE
WITH AUDIO.
KRISTI, IS EVERYTHING GOOD?
CAN YOU GIVE ME A THUMBS UP?
>> I CAN HEAR YOU.
>> GREAT.
OKAY.
AND SO I WOULD LIKE YOU TO TAKE
A LOOK AT THAT QR CODE THAT WILL
TAKE YOU TO THAT OPPORTUNITY MAP
AND THESE ARE RIGHT FOR R&D
DEVELOPMENT IN THE WOMEN'S
HEALTH ARENA.
I MENTIONED THAT IN THE TEXT
SPACE AND THE PRIVATE SECTOR,
WOMEN'S HEALTH IS NOT ON THE TOP
OF EVERYONE'S LIST.
HERE ARE 50 OPPORTUNITIES READY
FOR DEVELOPMENT.
WE HAVE COLLABORATED, THE OFFICE
OF AIDS RESEARCH TO ADDRESS HIV
IN WOMEN AND TO FOSTER AN
INTERDISCIPLINARY,
INTERSECTIONAL
COMMUNITY-CENTERED KNOWLEDGE
EXCHANGE ON TOPICS OF RELEVANCE
TO HIV AND CISGENDER AND
TRANSGENDER WOMEN AND GIRLS AND
GENDER-DIVERSE PEOPLE.
WE REVIEWED THE STATE OF THE
SCIENCE ON HIV IN WOMEN, PAYING
SPECIAL ATTENTION TO PREVENTION,
TREATMENT AND CURE AND SOCIAL
AND STRUCTURAL DETERMINANTS OF
HEALTH AND PUBLISHED IN THE
LANCIT THIS NEW PAPER ON
CENTERING THE HEALTH OF WOMEN
ACROSS THE HIV RESEARCH
CONTINUUM WHERE WE, WITH OUR
COLLABORATORS, IDENTIFIED
OPPORTUNITIES TO ADVANCE HEALTH
RESEARCH AND FOSTER
INTERDISCIPLINARY COLLABORATIONS
ON HIV IN WOMEN.
I'M GOING TO SHIFT TO MY LAST
TOPIC HERE WHICH IS CAREERS.
I MENTIONED THAT AT THE
BEGINNING OF MY TALK THAT OUR
VISION WAS THREE FOLD.
AND I'M NOT GOING TO GO OVER
THIS WHOLE SLIDE.
I'M GOING TO REFER YOU TO THIS
NATURE COMMUNICATION PAPER WHERE
I WORKED WITH DR. MARIE BERNARD,
THE CHIEF OFFICER FOR SCIENTIFIC
WORKFORCE AND THE CHIEF OF STAFF
AND THE DIRECTOR OF THE OFFICE
OF SCIENCE POLICY AS WELL AS
KELLY, WHO IS IN THE INTRAMURAL
PROGRAM AND A LEADER THERE.
WE PUT OUT THE STRATEGIES THAT
NIH IS TAKING TO IMPLEMENT
THROUGH A COORDINATED, CONCERTED
EFFORT, PROGRAMS ON THESE FIVE
DOMAINS.
ENHANCING FLEXIBILITY OPTIONS,
MAKING SURE THERE IS A CULTURE
OF INCLUSION, DEMONSTRATING
LEADERSHIP SUPPORT, MAKING SURE
THERE IS ACTION-ORIENTED
ACCOUNTABILITY MEASURES IN PLACE
AND OF COURSE, SUPPORTING
RESEARCH AROUND THE
INTERVENTIONS ADDRESSING
BARRIERS.
AND SO I WILL REFER YOU TO THIS
PAPER FOR THESE EFFORTS.
AND I'LL JUST FEATURE ONE OF
THEM FOR YOU RIGHT NOW.
AND THAT IS TOP RIGHT UNDER
ENHANCED FLEXIBILITY OPTIONS OUR
RE-ENTRY AND REINTERGRATION
PROGRAMS.
WE PROVIDE AND CREATE AID
PROGRAM TO PROVIDE FUNDS FOR
INDIVIDUALS WHO LEAVE RESEARCH
TO REENTER.
THAT'S A PLACE FOR MANY YEARS.
WE EXPANDED IT TO BE
REINTERGRATION WHICH MEANS IF
YOU'RE IN AN UNSAFE ENVIRONMENT,
SUCH AS BEING EXPOSED TO SEXUAL
HARASSMENT OR DISCRIMINATORY
PRACTICES THAT ARE ILLEGAL, YOU
CAN USE THESE FUNDS TO MOVE TO A
SAFE ENVIRONMENT.
AND THEN WE EXPANDED EVEN
FURTHER TO INCLUDE RETOOLING.
IF YOU WANT TO DEVELOP SOME
ADDITIONAL SKILLS, ESPECIALLY
FOR MID CAREER SCIENTISTS, WOMEN
AND MEN WHO ARE EXPERIENCING A
NEED TO GET RETOOLED TO MOVE
ACROSS SECTORS FOR EXAMPLE, YOU
CAN USE A SUPPLEMENT TO GET NEW
SKILLS AS LONG AS IT COVERS THE
SCOPE OF THE PARENT AND AWARD
YOU'RE UNDER.
WE PROVIDED A VARIETY OF POLICY
CHANGES, PROGRAMS, AND OTHER
EFFORTS AND TOGETHER, THIS
CONSTELLATION OF PROGRAMS,
POLICIES AND INITIATIVES CAN
CHANGE AND ADVANCE GENDER EQUITY
AND EQUITY BROADLY ACROSS OUR
RESEARCH WORKFORCE.
I CO-CHAIR THE NIH WORKING GROUP
ON WOMEN IN BIOMEDICAL CAREERS
TO DEVELOP TANGIBLE STRATEGIES
TO ADDRESS BARRIERS FOR WOMEN IN
SCIENCE.
AND HERE ARE SOME OF OUR
EFFORTS.
YOU CAN TAKE A LOOK AT THE WOMEN
IN SCIENCE.NIH.GOV WEBSITE FOR
MORE INFORMATION.
WE HAVE SEVERAL COMMITTEES,
WOMEN OF COLOR COMMITTEE, A
COMMITTEE FOCUSED ON EXTRAMURAL,
AND INTRAMURAL.
AND WE COLLABORATE WITH THE
NATIONAL INSTITUTE OF ARTHRITIS,
MUFFIN LOW SKELETAL AND SKIN
DISEASES AND THE OFFICE OF DATA
SCIENCE STRATEGY TO CREATE A NEW
TEAM SCIENCE LEADERSHIP SCHOLAR
PROGRAM WHERE WE ARE SUPPORTING
SCIENTISTS TYPICALLY MID CAREER
SCIENTISTS, FOR AN IMMERSIVE
COSSECTORAL COLLABORATIVE
EXPERIENCE TO EQUIP TO LEAD
LARGE CONSORTIA THE WAVE OF THE
FUTURE.
IT'S HERE NOW.
THAT'S WHAT WE NEED IN OUR
SCIENCE LEADERS.
WE ARE DOING THAT THROUGH A
PUBLIC-PRIVATE PARTNERSHIP THAT
NIH HAS THROUGH THE FOUNDATION
FOR NIH.
ASM STANDS FOR ACCELERATING
MEDICINE IN PARTNERSHIPS.
THAT'S WHAT WE USE FOR OUR COVID
WORK AS YOU MIGHT RECALL AND
THEN AIM IS AUTOIMMUNE, IMMUNE
MEDIATED DISEASES.
THIS IS A LARGE CONSORTIUM OF
INVESTIGATORS, PRIVATE SECTOR
ENTITIES, ACADEMICS WHO ARE
WORKING TOGETHER -- I LOOK
FORWARD TO SHARING NEWS ABOUT
THEIR WORK AND OUR SECOND COHORT
AS WELL.
NEXT SLIDE.
OY WANT TO MAKE SURE YOU'RE
AWARE THAT WE HAVE
INTERPROFESSIONAL HEALTH
EDUCATION MATERIALS AVAILABLE ON
OUR WEBSITE RELATED TO
UNDERSTANDING HOW SEX AND GENDER
AFFECT HEALTH AND DISEASE WITH
OUR BENCH TO BEDSIDE.
JUST CONTINUING EDUCATION AND
CREDITS.
WE HAVE A PRIMERO HOW TO
IMPLEMENT THE SEX AND BIOLOGICAL
VARIABLE POLICY.
WE HAVE A TRAIN THE TRAINER
PROGRAM TO HELP YOU LEARN HOW TO
INTEGRATE THAT INTO YOUR
CURRICULUM AND WE HAVE AN
INTRODUCTORY LEVEL POWERPOINT
SLIDE SET.
AND IN ADDITION, WE ARE REALLY
DELIGHTED TO HAVE PARTNERED WITH
NLM ON ANOTHER PROGRAM, OUR
FIRST R25.
IT'S CALLED GALVANIZING -- I
CAN'T BELIEVE THAT TITLE -- I
CAN'T READ THAT TITLE.
IT'S AROUND GENDER, CURRICULUM
THAT ARE BEING DEVELOPED BY THE
ENTITIES.
THOSE ARE OUR FIRST GRANTEES IN
THE TOP LEFT OF THE SLIDE.
WHERE THOSE CURRICULA ARE BEING
DEVELOPED AND THEN THEY WOULD BE
WIDELY AVAILABLE TO THE RESEARCH
ECOSYSTEM.
SO THANK YOU SO MUCH TO NLM FOR
HELPING US TO CREATE OUR
FIRST-EVER R25 AND CREATING
THESE CURRICULA THAT WILL THEN
BE WIDELY AVAILABLE TO THE
RESEARCH ECOSYSTEM AND THE
WORKFORCE.
SO, IT IS NATIONAL WOMEN'S
HEALTH WEEK.
AND TOMORROW, WE'LL BE LAUNCHING
THE STRATEGIC PLAN FOR WOMEN'S
HEALTH RESEARCH.
YOU CAN SEE DR. MONICA BETTER
FOLEY LAUNCH HER VIDEO TOMORROW
AND WE WILL BE ALSO RELEASING
OUR UNDERSTUDIED AND UNDER
REPORTED AND UNDERREPRESENTED
WOMEN POPULATIONS WOMEN HEALTH
DATA BOOK WITH DATA COMBINED
FROM MANY POPULATIONS WHERE YOU
CAN SEE THE POPULATIONS OF WOMEN
DRILLED DOWN BY VARIOUS
DEMOGRAPHICS AND RURAL VERSUS
URBAN LOCATIONS AND STATUS.
SO YOU CAN SEE THOSE HEALTHS
DIFFERENCES.
WE NEED TO SEE THOSE DIFFERENCES
SO WE CAN UNDERSTAND WHERE THE
NEEDS ARE AND WE CAN DEVELOP OUR
RESEARCH PROGRAMS, OUR POLICIES
AND OUR INTERVENTIONS WHERE THEY
ARE MOST NEEDED AND ALSO TO
ELEVATE EVERYONE'S HEALTH.
AND THEN WE ARE FOR THE FIRST
TIME RELEASING OUR WOMEN'S
HEALTH FACT SHEETS WHERE WE TOOK
10 OF THE LEADING CAUSES OF
MORTALITY AND MORBIDITY FOR
WOMEN.
WE DELINEATED WHAT NIH IS DOING
THERE.
WE TALKED ABOUT THE GAPS AND
OPPORTUNITIES AND THEN WE
DELINEATED OUR RESEARCH EFFORTS.
SO PLEASE TAKE A LOOK AT THOSE
FACT SHEETS.
TOMORROW WE'LL BE HOSTING THE
VIVIAN PINN SYMPOSIUM ON
AUTOIMMUNE DISEASES, A TYPE OF
SYNERGY IN SCIENCE, INNOVATIONS
AND AUTOIMMUNE DISEASE RESEARCH
AND CARE AND WE HAVE AN
INCREDIBLE KEYNOTE, INCREDIBLE
CAPSTONE KEYNOTE, AN AMAZING
PANEL WITH THE PATIENT
PERSPECTIVE INTEGRATED INTO OUR
PROGRAM AND THEN ON THURSDAY,
PLEASE JOIN US FOR OUR
FIRST-EVER NIH WOMEN'S HEALTH
RESEARCH ROUNDTABLE.
THIS IS A LINED WITH THE WHITE
HOUSE INITIATIVE AND ON THE
FUTURE OF MENOPAUSE RESEARCH,
OPTIMIZING MID LIFE HEALTH OF
WOMEN.
I'M EXCITED TO BE HERE WITH YOU
TODAY AND I REALLY WANTED TO
THANK DR. SHERRY AND ALL THE NLM
COLLEAGUES AND TEAM FOR INVITING
ME TO SHARE A LITTLE BIT ABOUT
WHAT NIH IS DOING IN THE WOMEN'S
HEALTH RESEARCH SPACE.
IT HAS BEEN OUR PRIVILEGE TO
WORK WITH NLM ON THESE EFFORTS
AND TO COLLABORATION, THAT'S HOW
WE WILL ACHIEVE OUR MISSION AND
OUR VISION.
NEXT SLIDE WILL JUST SHOW YOU
HOW TO CONNECT WITH US ON SOCIAL
MEDIA AND OUR WEBSITE.
WITH THAT, THANK YOU FOR YOUR
ATTENTION.
I'M HAPPY TO BE ABLE TO TAKE
SOME QUESTIONS -- QUESTIONS AS
LONG AS THERE IS TIME TO DO SO.
THANK YOU VERY MUCH.
>> THANK YOU VERY MUCH,
DR. CLAYTON.
WHAT AN IMPRESSIVE AND IMPORTANT
BODY OF WORK.
WE ARE SO GLAD YOU COULD JOIN US
TODAY.
AT THIS TIME I WOULD LIKE TO
WELCOME MITCHELL KATZ AND
OMOLOLA OGUNYEMI TO LEAD THE
DISCUSSION PERIOD FOR THIS
PRESENTATION.
>> THANK YOU VERY MUCH
DR. CLAYTON.
REALLY IMPRESSIVE AS ALREADY
SAID, BY YOUR WORK, AND IT'S
VERY EXCITING NEWS ABOUT THE NIH
STRATEGIC PLAN FOR WOMEN'S
HEALTH RESEARCH.
LOOKING FORWARD TO THE MANY
OPPORTUNITIES THAT WILL COME
THROUGH THAT AND BE ONGOING
COLLABORATION WITH THE NLM.
WITH THAT SAID, I WAS WONDERING,
YOU HAD A LITTLE BIT TO THE --
ALLUDED TO THE FACT IN THE PAST
WHEN WE HAD CLINICAL TRIALS WERE
PERFORMED AND PEOPLE DIDN'T
UNDERSTAND THAT THERE WERE
NECESSARILY SEX DIFFERENCES
BETWEEN MEN AND WOMEN, SO HU
TRIALS THAT INCLUDED JUST MEN
AND RECOMMENDATIONS MADE.
SO IS THERE ANY EFFORTS TO LOOK
AT CURRENT TREATMENTS BASED ON
SUCH FLAWED TRIALS TO EITHER
UPDATE THEM OR -- I KNOW THERE
ARE NEW TRIALS AND THERE ARE
MANY NEW FUNDING OPPORTUNITIES
GOING FORWARD, BUT IS THERE ANY
EFFORT TO LOOK AT CURRENT
TREATMENTS THAT ARE ESSENTIALLY
CAME OUT OF THAT PERIOD OF NOT
UNDERSTANDING THAT THERE MIGHT
BE DIFFERENCES AND HOW IT IS
AFFECTING WOMEN NOW?
>> THANK YOU VERY MUCH FOR THAT
QUESTION.
AS YOU MENTIONED, SCIENCE IS
ITERATIVE.
SO WE HAVE NEW TRIALS.
IT'S VERY, VERY UNCOMMON TO SEE
WOMEN NOT BEING CONSIDERED IN
TODAY'S LARGE CLINICAL TRIALS.
I THINK PEOPLE ALL REALIZE THE
IMPORTANCE OF THAT.
AND IT'S ACTUALLY A CREDIT TO
SCIENCE THERE ARE SO MANY NEW
INTERVENTIONS THAT ARE NOW
AVAILABLE WHERE 30 YEARS AGO WE
WERE TALKING ABOUT WHETHER
ASPIRIN PREVENTED CARDIOVASCULAR
DISEASE.
Mr. FIT WAS THE ORIGINAL
TRIAL, YOU MAY BE AWARE JUST
INVOLVED MEN OR THE TRIALS THAT
LOOKED AT ESTROGEN IN MEN TO SEE
IF IT WAS PROTECTIVE.
TODAY, THERE IS SO MANY
FORMULATIONS AND NEW
THERAPEUTICS, NEW TARGETS, NEW
PATHWAYS.
IT WOULDN'T REALLY BE VALUE
ADDED TO RE-LOOK AT THAT IN A
NEW WAY.
HOWEVER, WE DO HAVE, AS YOU
KNOW, ALL KINDS OF ANALYTIC
TOOLS NOW WHERE WE CAN COMBINE
DATASETS AND DO IN SILICO
SIMULATIONS.
WE CAN CREATE A VIRTUAL
SITUATION WHERE WE CAN TEST
HYPOTHESES AND I WOULD BE
SUPPORTIVE OF THAT APPROACH
WHERE YOU CAN DEVELOP NEW
QUESTIONS THAT ARE RELEVANT
TODAY AND THAT WOULD TAKE
ADVANTAGE OF THAT INFORMATION.
SO BUILD OFF THERE WERE NO WOMEN
INCLUDED.
WE DON'T KNOW XYZ.
WE KNOW A LITTLE BIT MORE
BECAUSE OF NEW THINGS BUT NOW
THAT IS A NEW QUESTION.
THAT'S THE WAY WE WANT TO REALLY
PUT ALL OF THE DATA TO WORK IN
AN INTEGRATIVE WAY.
AND I'M JUST SO EXCITED ABOUT
THE POTENTIAL FOR MULTIOMICS TO
ALLOW US TO LEARN SO MUCH MORE.
EFFECTS AT EVERY LEVEL.
WE HAVE SO MUCH DATA BUT WE
DON'T NECESSARILY HAVE ALL THE
COMPUTATIONAL CAPACITY THAT WE
NEED.
NLM IS THE SUPPORTING IT SO I'M
THRILLED TO SEE THAT TO BE ABLE
TO DERIVE INSIGHTS FROM ALL THAT
DATA.
THAT IS WHERE I'M LOOKING FOR
NEXT.
BUT THANK YOU VERY MUCH FOR THAT
QUESTION.
IT'S A GREAT QUESTION BECAUSE
TVs TAXPAYER-FUNDED RESEARCH.
WE NEED TO GET ANSWERS FOR THE
PEOPLE THAT ARE AFFECTED BY
THOSE DISEASES.
AND TODAY WE DO LOOK AT THOSE
DIFFERENCES IN A METHODICAL WAY
IN PHASE III CLINICAL TRIALS.
DIFFICULTY, DR. KATZ MENTIONED
HE HAD TO STEP AWAY.
-- KRISTI --
>> OKAY, WONDERFUL.
COULD I ASK A QUESTION?
SO I'M WONDERING, IT SEEMS LIKE
THERE IS REALLY QUITE A STRONG
COMMUNITY OF PRACTICE AND
OPPORTUNITIES TOW BRING PEOPLE
TOGETHER AROUND THIS IMPORTANT
TOPIC.
AND I'M WONDERING IF YOU HAVE
ADVICE FOR THOSE OF US WHO ARE
IN UNIVERSITY SETTINGS WHERE
THERE IS THIS KIND OF RESEARCH
HAPPENING.
ARE THERE SUGGESTIONS YOU MIGHT
HAVE FOR US TO BE ABLE TO BRING
PEOPLE TOGETHER AND TO SUPER
CHARGE THOSE CONVERSATIONS IN
OUR LOCAL SETTINGS?
>> KRISTI, IT IS SO INTERESTING
YOU USED THE WORD SUPER CHARGED
BECAUSE THAT IS THE WORD THAT
KEEPS BEING USED RIGHT NOW.
THAT THIS PRIORITIZATION OF
WOMEN'S HEALTH AT THE HIGHEST
LEVEL IS DESIGNED TO SOONER
CHARGE THAT EFFORT.
ONE OF THE THINGS I WOULD
RECOMMEND THAT ANYONE WHO IS IN
THE WOMEN'S HEALTH RESEARCH
SPACE AND ANYONE WHO IS NOT IN
THE WOMEN'S HEALTH RESEARCH
SPACE, THAT YOU TAKE A LOOK AT
THAT NOTICE OF SPECIAL INTEREST
WHERE WE HIGHLIGHT ALL OF THE
PARENT FUNDING OPPORTUNITIES.
THERE IS SOMETHING THERE FOR
EVERYONE.
SO, KRISTI IN THE ACADEMIC
SETTING, IF YOU GO TO A
COLLEAGUE AND SAY I THINK THERE
IS A NEW OPPORTUNITY FOR US TO
GET GRANT FUNDING, I'M PRETTY
SURE THEY WILL BE WILLING TO
TALK TO YOU.
I WOULD LEAD WITH, THESE ARE NEW
OPPORTUNITIES.
NEW AVENUES.
NEW PATHWAYS.
WE ARE LOOKING FOR
INTERDISCIPLINARY RESEARCH.
THAT'S THE OTHER THING.
THAT IS A NEW WAY OF DOING
WOMEN'S HEALTH RESEARCH FROM THE
NIH PERSPECTIVE.
IT'S BEEN SOMETHING THAT ORWH IS
SUPPORTIVE FOR YEARS BUT IT'S
NOW AT A HIGHER LEVEL WHERE WE
ARE TRYING TO GET MULTIPLE
DISCIPLINES TOGETHER AND NOT
LIKE A MULTIDISCIPLINARY TEAM
WHERE WE ARE SITTING AROUND THE
TABLE TALKING ABOUT A PATIENT.
AS IMPORTANT AS THAT IS, WE ARE
TRYING TO TAKE THAT EVEN TO THE
NEXT LEVEL WHERE IT'S REALLY
INTERDISCIPLINARY WHERE YOU'RE
CREATING SOMETHING TOTALLY NEW
THAT DIDN'T EXIST BEFORE.
YOU'RE NOT JUST LOOKING AT YOUR
PIECE OF THE PUZZLE.
AND SO, IF YOU THINK ABOUT IT,
YOU MIGHT HAVE A FRUIT BOWL ON
YOUR TABLE AND THERE IS APPLES
AND ORANGES AND GRAPEFRUITS.
THAT'S WHAT WE ARE DOING NOW.
YOU MIGHT CHOP IT UP AND MAKE A
FRUIT COCKTAIL.
GREAT.
BUT I'M LOOKING FOR A SMOOTHIE
WHERE YOU REALLY INTEGRATE
EVERYTHING AND COME UP WITH
SOMETHING TOTALLY DIFFERENT
WHERE EACH OF THE COMPONENTS ARE
KEYING OFF EACH OTHER TO CREATE
THAT NEW OPPORTUNITY TO GENERATE
NEW INSIGHTS, SPECIFIC TO THE
WAYS WOMEN EXPERIENCE HEALTH AND
DISEASE.
IT DOESN'T HAVE TO BE FEMALE
ONLY.
IT JUST NEEDS TO BE THROUGH THE
LENSE OF WOW, HOW DOES BEING
FEMALE -- OR HOW DOES THIS
HORMONAL PROFILE AFFECT GENE
EXPRESSION IN THIS DISEASE.
OR CAN WE DEVELOP A BETTER
ANIMAL MODEL THAT RECAPITULATES
THE SEX DIFFERENCES WE SEE IN
MULTIPLE SCLEROSIS?
SO WE CAN BETTER UNDERSTAND
THOSE SEX DIFFERENCES.
CAN WE CREATE AN IN SILICO MODEL
SO WE DON'T HAVE TO USE ANIMAL
MODELS?
YOU CAN CREATE THE VIRTUAL
FEMALE PATIENT WHERE YOU
INTEGRATE ALL THE DAYA THAT ARE
AVAILABLE FROM TRANSCRIPTOMICS
TO EPIGENETICS, TO ENVIRONMENTAL
EXPOSURES, THROUGH SURVEYS,
THROUGH QUALITY OF LIFE
ASSESSMENTS, THROUGH
ENVIRONMENTAL EXPOSURES TO TOXIC
RELATIONSHIPS, CAN YOU INTEGRATE
ALL THAT INFORMATION TOGETHER TO
MODEL A VIRTUAL FEMALE SO WE CAN
DO ALL KINDS OF THINGS THAT WE
CAN'T IMAGINE RIGHT NOW?
I THINK IF YOU DANGLE THE
FUNDING OPPORTUNITY, THEY WILL
AT LEAST BE WILLING TO HAVE A
CONVERSATION WITH YOU.
>> WONDERFUL, THANK YOU.
I'LL PASS IT OVER TO LOLA TO SEE
IF YOU HAVE ANY OTHER QUESTIONS.
>> I HAD ONE FINAL QUESTION AND
I KNOW WE ARE CLOSE TO TIME.
BUT BASICALLY IT HAS TO DO WITH,
ONE OF THE THINGS YOU MENTIONED
IS GETTING PRIVATE INDUSTRY
BUSINESSES TO INNOVATE IN
WOMEN'S HEALTH.
THERE IS SPECIFIC -- LOTS OF
PEOPLE AFFECTED BY FIBROIDS,
CYSTIC OVARIAN SYNDROME,
ENDOMETRIOSIS.
WHAT ARE THE WAYS OTHER THAN
SBIRs, THAT THE NIH CAN HELP
INCENTIVIZE PRIVATE INDUSTRY TO
GET INVOLVED MORE?
>> SO OUR WOMEN'S HEALTH
OPPORTUNITY MAP WAS INTENDED TO
LAY OUT THE R&D OPPORTUNITIES.
FROM THE PERSPECTIVE OF THIS
VERY INTERNATIONAL GROUP OF
INDIVIDUALS WHO ARE IN THIS
SPACE.
SO WE ARE IDENTIFYING WHAT WE
THINK ARE THE 50 HIGH RETURN R&D
OPPORTUNITIES.
THAT IS A PRETTY AMAZING SET OF
INFORMATION THAT ANYBODY WOULD
BE PROVIDED.
AND I THINK THAT PRIVATE SECTOR
AND OTHERS WILL BE VERY
INTERESTED IN WHERE WE SEE THOSE
OPPORTUNITIES.
WE ARE ALWAYS LOOKING FOR
CREATIVE WAYS TO PARTNER WITH
PRIVATE INDUSTRY AND THAT IS A
SPECIFICALLY CALLED OUT IN THE
EXECUTIVE ORDER PROMOTING
PUBLIC/PRIVATE PARTNERSHIPS SO
WE CAN DO THAT IN A VARIETY OF
WAYS.
AS YOU KNOW, THROUGH THE
FOUNDATION FOR NIH, BUT THERE
ARE OTHER WAYS AS WELL.
SO I THINK THAT WE ARE IN A
DIFFERENT TIME WHERE WE ARE
POISED TO WORK TOGETHER BY
CONVERGING ON THE PROBLEMS IN
NEW WAYS.
YOU IDENTIFIED SEVERAL OF THEM.
FIBROIDS.
MANY WOMEN, AFRICAN-AMERICAN
WOMEN IN PARTICULAR, THEY CAUSE
HUGE ISSUES AND PROBLEMS AROUND
FERTILITY AND PAIN AND ANEMIA
BECAUSE OF OTHER COMPLICATIONS.
AND WE DON'T REALLY UNDERSTAND
THEM.
WE UNDERSTAND SOMETHING ABOUT
THEM BUT THERE IS A LOT MORE TO
LEARN ABOUT THEM.
AND SO, THERE IS A SUBSTANTIAL
MARKET IN THIS SPACE, A WORLD
OPPORTUNITY AS WELL.
SO ONE OF THE OTHER THINGS FOR
PRIVATE INDUSTRY IS FOR THEM TO
REALIZE THE UNTAPPED MARKET THAT
EXISTS AND THERE ARE NOW DATA
FROM THE RAND CORPORATION WHERE
THEY LOOKED AT WHEN YOU INCREASE
THE INVESTMENT IN SPECIFIC
WOMEN'S HEALTH TOPICS, WHAT IS
THE RETURN ON THE INVESTMENT FOR
ECONOMIC BENEFIT?
AND SO FROM A SOCIETAL
PERSPECTIVE, THE RETURN IS
INCREDIBLE.
IT'S LIKE 250%.
I THINK THAT WAS AUTOIMMUNE
DISEASE.
AND SO, I THINK THERE IS
CERTAINLY THE EQUITY CASE TO
MAKE FOR WOMEN'S HEALTH
RESEARCH.
THERE IS A BUSINESS CASE TO MAKE
FOR IT.
AND THERE IS A RIGOR CASE.
OUR RESEARCH IS MORE RIGOROUS
AND WE CONSIDER ALL THE FACTORS
THAT WE NOW KNOW AFFECT HEALTH
AND DISEASE.
SO THAT'S WHY WE MUST ACCOUNT
FOR SEX AS A BIOLOGICAL VARIABLE
WHEN WE ARE DESIGNING OUR
STUDIES AND LAUNCHING OUR WORK
AND REPORTING OUR RESULTS.
AND BY PUTTING THIS ALL
TOGETHER, YOU CAN DRIVE
INNOVATION.
YOU CAN DRIVE DISCOVERY AND YOU
CAN CERTAINLY DRIVE BENEFIT TO
THE AMERICAN PEOPLE AND BEYOND.
SO, I HOPE THAT THE PUBLIC
SECTOR, THE PUBLIC, THE
COMMUNITY, ANYONE WHO TOUCHES
THE HEALTH SPACE, THIS IS MY
GOAL.
THAT THINKING ABOUT THE HEALTH
OF WOMEN WOULD BE AS AUTOMATIC
AS LOOKING BOTH WAYS BEFORE YOU
CROSS THE STREET.
THAT'S WHERE WE NEED TO BE.
AND UNTIL WE ARE THERE, WE HAVE
MORE WORK TO DO.
AND IT'S MY PRIVILEGE AND
PLEASURE TO BE HERE WITH YOU
TODAY.
AGAIN, THANK YOU, STEVE FOR
INVITING ME.
THANK YOU DINA FOR ALL YOUR WORK
BEHIND-THE-SCENES.
AND I DO WANT TO IDENTIFY AND
CALL OUT MY DEPUTY DIRECTOR,
DR. VIVIAN WHO HELPED ME GET
PREPARED FOR TODAY AND STEVE WHO
HELPED ME WITH ALL OF THE
DECIDES FOR TODAY.
THANK YOU ALL FOR YOUR ATTENTION
AND YOUR QUESTIONS.
>> WONDERFUL, THANK YOU VERY
MUCH DR. CLAYTON.
AS WE MOVE DOWN THE AGENDA, IT'S
TIME FOR ANNOUNCEMENTS OF NLM
DIRECTORS AND FRANK B ROGERS
AWARDS.
AND I WILL TURN IT OVER TO
DR. SHERRY FOR THAT.
THANK YOU.
>> THANK YOU.
I'M PLEASED TO ANNOUNCE THE
RECIPIENTS OF TWO AWARDS THAT
WILL BE PRESENTED TODAY.
THE IN.
LM DIRECT AR'S HONOR AWARD AND
THE ROGERS AWARD.
THE FIRST IS NLM DIRECTOR'S
HONOR AWARD ESTABLISHED IN 1969
TO RECOGNIZE AND ACKNOWLEDGE THE
WORK OF NLM EMPLOYEES WHOA MADE
EXCEPTIONAL CONTRIBUTIONS TO THE
ACHIEVEMENTS OF THE LIBRARY.
NOMINEES MUST BE EMPLOYEES OR AT
LEAST TWO YEARS OF SERVICE TO
NLM.
SPECIAL RECOGNITION BY THE
DIRECTOR FOR OUTSTANDING AND
CLEARLY EXCEPTIONAL SERVICES
THAT ADVANCES THE LIBRARY
MISSION.
THIS YEAR WE ARE PLEASED TO
PRESENT THIS HONOR AWARD TO TWO
PEOPLE.
FIRST TO Mr. JOHN MULLICAN.
HE IS A BUDGET TEAM LEAD IN THE
OFFICE OF ADMINISTRATIVE
MANAGEMENT IN THE BIOTECHNOLOGY
INFORMATION.
HE IS RECOGNIZED FOR MANAGING
COMPLEX AND CONTRACT RENEWALS
LAST YEAR AND LONG-RANGE BUDGET
MODELING THAT ENABLED STRATEGIC
ACTION.
HE IS CONSISTENTLY DEMONSTRATED
A STEADFAST COMMITMENT TO NCBI'S
MISSION.
AMONG HIS MANY CONTRIBUTIONS TO
THE LIBRARY, TWO RECENT ONES
HAVE BEEN INSTRUMENTAL TO THE
OPERATIONAL STABILITY AND LONG
TERM STRATEGIC PLANNING.
THE FIRST IS HIS CREATION OF
CONFIDENCE OF BUDGET MODELS THAT
RECONCILE NCBI'S EXPENSES AND
PROJECTED REVENUES.
THE SECOND IS HIS ROLE IN
SHEPHERDING SUBTLE CRITICAL
CONTRACTOR RENEWALS THAT ARE
ESSENTIAL TO DELIVERING SERVICES
TO THE RESEARCH COMMUNITY.
JOHN HAS CONSISTENTLY
EXEMPLIFIED FORESIGHT,
DEDICATION AND ACUMEN IN HIS
EFFORTS TO ENSURE THE
OPERATIONAL EXCELLENCE AND
FUTURE STABILITY.
WE THANK YOU FOR THESE EFFORTS
AND SO MUCH MORE.
CONGRATULATIONS, JOHN.
NEXT SLIDE.
NEXT WE PRESENT THE NLM
DIRECTOR'S HONOR AWARD TO
ANTHONY TSE.
HE IS A CLINICALTRIALS.GOV
POLICY ANALYST IN THE NCBI'S
INFORMATION AND ENGINEERING
BRANCH.
HE IS BEING RECOGNIZED FOR HIS
UNWAVERING SERVICE SUPPORTING
THE NATIONAL INSTITUTES OF
HEALTH, CLINICAL TRIAL
TRANSPARENCY AND THE
DISSEMINATION AND EXCHANGE OF
SCIENTIFIC INFORMATION.
OVER HIS CAREER, HE HAS PROVIDED
THE ANALYSIS TO IMPLEMENT THE
LEGAL AND POLICY REQUIREMENT FOR
CLINICALTRIALS.GOV.
WHICH PROVIDES NIH RESEARCHERS
AND THE PUBLIC AND OTHERS WITH
UP-TO-DATE CLINICAL RESEARCH
INFORMATION.
DR. TSE HAS PUBLISHED MANY
PEER-REVIEWED ARTICLES AND HIGH
IMPACT JOURNALS ON TOPICS THAT
PROMOTE THE EXCHANGE OF
SCIENTIFIC INFORMATION SUCH AS
ANALYZING CLINICAL STUDIES AND
TIES TO PUBLICATION.
BY PLAYING A KEY ROLE WITH
CLINICALTRIALS.GOV AND
PUBLISHING ARTICLES THAT SUPPORT
SCIENTIFIC EXCHANGE, HE HAS
CONTRIBUTED TO THE NLM'S WELL
RESPECTED REPUTATION IN THIS
AREA.
AS A RESULT, NLM AND NIH HAVE
BEEN ABLE TO MEET NOT ONLY THE
LETTER OF THE LEGAL AND POLICY
REQUIREMENTS BUT TO DO IT IN A
WAY THAT IS CONSISTENT WITH THE
OVERALL CLINICAL TRIAL
TRANSPARENCY AND ACCOUNTABILITY
FRAMEWORK THAT EVOLVED BEYOND
CLINICALTRIALS.GOV OVER THE PAST
25 YEARS.
CONGRATULATIONS TO Mr.
Mr. MULLIGAN AND DR. TSE FOR
EXCEPTIONAL SERVICE.
THE SECOND AWARD PRESENTED IS
THE FRANK B ROGERS AWARD.
THIS AWARD WAS ESTABLISHED IN
1989 BY THE NLM DIRECTOR.
THE PURPOSE OF THIS AWARD IS TO
RECOGNIZE EMPLOYEES WHO MAKE
SIGNIFICANT CONTRIBUTIONS TO THE
LIBRARY'S'S FUNDAMENTAL
OPERATIONAL SERVICES.
ELIGIBLE EMPLOYEES ARE THOSE
CURRENTLY OR PREVIOUSLY EMPLOYED
BY NLM DURING 2023.
THIS YEAR, WE ARE PLEASED TO
PRESENT THE AWARD TO TWO
RECIPIENTS.
THIS FIRST AWARD IS PRESENTED TO
Mr. ALVIN STOCK DALE.
HE IS A SENIOR SERIAL SPECIALIST
WITH THE DISCOVERY BRANCH OF THE
USER SERVICES AND COLLECTIONS
DIVISION WITHIN THE LIBRARY.
HE IS BEING RECOGNIZED FOR
EFFORTS TO STREAMLINE AND
AUTOMATE PROCESSES RELATED TO
CATALOGING AND ACQUISITIONS AND
NLM'S LIBRARY SERVICES PLATFORM.
HE HAS SUCCESSFULLY MAPPED 27
REPOSITORIES INTO THE DATASET
CATALOG AND CONTRIBUTED TO THE
DEVELOPMENT AND PREPARATION OF
THE DATASET CATALOG FOR PUBLIC
LAUNCH AS A BETA PRODUCT IN
EARLY 2024 RESULTING IN REDUCED
LABOR AND SIGNIFICANT COST
SAVINGS FOR NLM.
ADDITIONALLY, HE DEVELOPED A
TITLE SEARCH TOOL FOR CATALOGERS
TO EASILY DETERMINE WHETHER THE
TITLE OF A NEW RYE SOURCE IS
UNIQUE.
THIS TOOL WAS SHARED WITH THE
BROADER LIBRARY COMMUNITY TO
ILLUSTRATE THE IMPORTANCE OF HIS
WORK.
HIS ACCOMPLISHMENTS LEAD TO
IMPROVEMENTS AND MORE EFFECTIVE
OPERATIONS OF SEVERAL NLM
PRODUCTS AND SERVICES.
NEXT SLIDE.
THE FRANK B ROGERS AWARD IS ALSO
PRESENTED TO LINDA YANKEE.
SHE IS A STAFF SCIENTIST WITH
THE NCBI'S INFORMATION
ENGINEERING BRANCH, SEQUENCE
ARCHIVES PROGRAM.
SHE SERVES AS THE TEAM LEAD FOR
GEN BANK, THE GENOMICS SEQUENCE
REPOSITORY THAT SUPPORTS OPEN
SCIENCE AND ADVANCES IN RESEARCH
AND DEVELOPMENT IN BIOMEDICAL
INFORMATICS AND DATA SCIENCE.
SHE WAS CHALLENGED TO DEVELOP AN
APPROACH TO REDUCE THE
SUBMISSION PROCESSING BACKLOG IN
LIGHT OF THE INCREASE IN
SUBMISSIONS BY THE MILLIONS,
PARTICULARLY DURING THE COVID-19
PANDEMIC AND THERE WAS A LIMITED
STAFFING.
SHE WORKED WITH HER TEAM TO
STREAMLINE THE PROCESSING OF
DATA AND AUTOMATE PROCESSES,
DEVELOP STANDARD OPERATING
PROCEDURES IN A DASHBOARD TO
TRACK THE TEAM'S EFFORTS.
THE BACKLOG WAS ELIMINATED.
HER EFFORTS RESULTED IN A
SUBSTANTIAL IMPROVEMENT AND MORE
EFFECTIVE OPERATION OF THE
PROGRAM.
AGAIN, THANK YOU AND
CONGRATULATIONS DR. YANKEE AND
I'D LIKE TO CONGRATULATE
Mr. STOCK DALE AND TSE FOR
SIGNIFICANT CONTRIBUTIONS TO THE
LIBRARY.
GREATLY APPRECIATE IT.
THANK YOU.
WITH THAT, WE HAVE CONCLUDED, I
BELIEVE, THE AWARD SECTION OF
THE PROGRAM.
>> YES, THANK YOU VERY MUCH.
AND CONGRATULATIONS EVERYONE ON
THIS TERRIFIC WORK, THANK YOU.
IT IS NOW TIME TO CONCLUDE OUR
OPEN PORTION OF THE MEETING.
AND SELECT PEOPLE LIFE MOVED
INTO BREAKOUT ROOMS FOR THE
CLOSED SECTION.
THANK YOU ALL FOR JOINING US
TODAY AND WE'LL LOOK FORWARD TO
SEEING YOU AT THE NEXT BORED OF
REGENTS MEETING IN SEPTEMBER.