>>TODAY IS TUESDAY, MAY 10, IT
IS 10 A.M. EASTERN AND THE 190TH
MEETING OF NATIONAL LIBRARY OF
MEDICINE BOARD OF REGIONS IS NOW
CALLED TO ORDER. THIS IS ALSO
THE 7TH CONSECUTIVE VIRTUAL
MEETING OF THE BOARD OF REGENTS
WE WELCOME Y'ALL. BEFORE WE
BEGIN I HAVE A FEW
ANNOUNCEMENTS, HOUSEKEEPING.
THIS MEETING IS BEING VIDEOCAST
TO THE PUBLIC. DURING THE
DISCUSSION AND Q&A SESSIONS
PLEASE USE THE ZOOM RAISE HAND
FEATURE TO BE RECOGNIZED BY THE
CHAIR. I WILL MONITOR THE
PARTICIPANTS WINDOW AND WILL TRY
TO RECOGNIZE PARTICIPANTS WITH
RAISED HANDS IN THE ORDER I SEE
THEM RAISED. IF YOU RAISE YOUR
HAND ON CAMERA, I WILL TRY TO
ALSO RECOGNIZE THAT BUT THAT
MIGHT BE A LITTLE BIT MORE
CHALLENGING TO DETECT. NLM MEDIA
OPERATIONS STAFF WILL BE
MONITORING THE CHAT WINDOW
THROUGHOUT TODAY'S MEETING. AND
ARE AVAILABLE TO PROVIDE ANY
TECHNICAL ASSISTANCE NEEDED. YOU
CAN REACH THEM VIA EMAIL AT
NLMMEDIAOPERATIONSTEAM@NLM.NIH.G
OV. AS WE PROCEED TODAY PLEASE
REMEMBER TO BE MINDFUL OF YOUR
CAMERA. AND MICROPHONE AND BE
SURE TO MUTE YOURSELF WHEN NOT
PRESENTING OR PARTICIPATING IN A
DISCUSSION. MOVING TO OUR FIRST
ITEM, I AM HONORED TO BE ABLE TO
INTRODUCE OUR FIRST SPEAKER, DR.
VIVEK H MURTHY WAS CONFIRMED BY
THE U.S. SENATE IN MARCH 2021 TO
SERVE AS THE 21ST SURGEON
GENERAL OF THE UNITED STATES. AS
THE NATION'S DOCTOR THE SURGEON
GENERAL'S MISSION IS TO HELP LAY
THE FOUNDATION FOR HEALTHIER
COUNTRY RELYING ON THE BEST
SCIENTIFIC INFORMATION AVAILABLE
TO PROVIDE CLEAR CONSISTENT AND
EQUITABLE GUIDANCE AND RESOURCES
FOR THE PUBLIC. AS VICE ADMIRAL
OF THE U.S. PUBLIC HEALTH
SERVICE COMMISSION CORPS DR.
MURTHY COMMANDS A UNIFORM
SERVICE OF OVER 6,000 DEDICATED
PUBLIC HEALTH OFFICERS SERVING
THE MOST UNDERSERVED AND
VULNERABLE POPULATIONS
DOMESTICALLY AND ABROAD. WHILE
SERVING AS 21ST SURGEON GENERAL
DR. MURTHY IS FOCUSED ON DRAWING
ATTENTION TO AND WORKING ACROSS
GOVERNMENT TO ADDRESS A NUMBER
OF CRITICAL PUBLIC HEALTH
ISSUES, INCLUDING GROWING
PROLIFERATION OF HEALTH AND
MISINFORMATION, THE ONGOING
YOUTH MENTAL HEALTH CRISIS, WELL
BEING AND BURN OUT IN HEALTH
WORKER COMMUNITY. AND SOCIAL
ISOLATION AND LONELINESS.
ADDITIONALLY HE SERVES AS A KEY
ADVISOR TO PRESIDENT BIDEN'S
COVID-19 PANDEMIC RESPONSE
OPERATION. WELCOME, DR. MURTHY,
THANK YOU FOR BEING WITH US THIS
MORNING.
>> THANK YOU SO MUCH, NEIL, FOR
THAT KIND INTRODUCTION, IT IS
WONDERFUL TO BE WITH YOU TODAY,
I WISH WE COULD ALL BE TOGETHER
IN PERSON BUT I KNOW THAT THE
WORLD IS -- HAS MADE THAT
DIFFICULT AT TIMES. BUT IT IS
GOOD TO SEE YOUR FACES ON THE
SCREEN. I ALSO JUST WANT TO
THANK NLM BROADLY FOR ALL ITS
WORK DURING THE PANDEMIC. ONE OF
THE THINGS THAT I KNOW IS AT THE
HEART OF THE MISSION COVID
HIGHLIGHTED AS BEING SO
IMPORTANT IS BOTH SCIENCE AND
SCIENTIFIC KNOWLEDGE BUT ALSO
HOW WE COMMUNICATE THAT
KNOWLEDGE TO THE PUBLIC AND I
THINK THAT THE PANDEMIC
HIGHLIGHTED FOR US HOW IMPORTANT
THE SCIENCE IS BUT THAT WITHOUT
ABILITY TO GET IT OUT TO PUBLIC
IN WAYS THAT PEOPLE CAN
UNDERSTAND THAT WE OFTEN LOSE
WHAT I THINK ARE -- IS
INCREDIBLE GIFTS THAT WE HAVE
FROM SCIENTIFIC ADVANCEMENTS AND
DISCOVERY, SO JUST APPRECIATE
THE MISSION AND THE WORK OF THIS
GROUP EVEN MORE THAN BEFORE. I
WANT TO GIVE YOU SPECIFICALLY AN
UPDATE ON SOME OF THE ISSUES WE
ARE WORKING ON IN THE OFFICE OF
THE SURGEON GENERAL. BEFORE I DO
THAT I WANT TO STEP BACK AND
FIRST TELL YOU WHY I'M DOING
THIS WORK. AROUND WHY I CAME
BACK TO THIS JOB. IT WAS NOT
NECESSARILY IN MY PLANS TO COME
BACK AND WORK IN GOVERNMENT AS
MUCH AS I TREASURED THE
EXPERIENCE I DIDN'T THINK I
WOULD HAVE AN OPPORTUNITY TO
COME BACK AS QUICKLY. BUT COVID
SCRAMBLED EVERYONE'S LIFE PLANS
OR MANY LIFE PLANS AND WHEN
PRESIDENT BIDEN ASKED ME TO COME
BACK TO SERVE THERE WERE COUPLE
OF REASONS THIS FELT LIKE THE
RIGHT STEP TO TAKE. ONE IS
BECAUSE LIKE ALL OF US I WANTED
TO DO EVERYTHING I COULD TO HELP
ADDRESS THE COVID PANDEMIC WHICH
WAS TURNING OUR COUNTRY AND THE
WORLD UPSIDE DOWN BUT I WAS ALSO
DEEPLY CONCERNED ABOUT BROADER
CHALLENGES THAT OUR COUNTRY WAS
FACING THAT HAVE BEEN
HIGHLIGHTED BY COVID IN
PARTICULAR MENTAL HEALTH AND
WELL BEING. MANY OF YOU ARE
AWARE THAT THE DATA ON MENTAL
HEALTH AND HOW IT WAS DECLINING
IN TERMS OF OUR MEASURES OF WELL
BEING BEFORE THE PANDEMIC WE SAW
RISING RATES OF ANXIETY AND
DEPRESSION PARTICULARLY WHEN WE
LOOK AT OUR KIDS, OUR KIDS WERE
STRUGGLING. 57% INCREASE IN THE
SUICIDE RATE AMONG YOUNG PEOPLE
PRECEDING THE PANDEMIC. WE ALSO
SAW THE NUMBER OF HIGH SCHOOL
STUDENTS WHO WERE SAYING THEY
FELT PERSISTENTLY HOPELESS AND
SAD HAD INCREASE BY 40% PRIOR TO
PANDEMIC, CONTINUED TO INCREASE
DURING THE PANDEMIC, SO ALL THAT
TO SAY THAT OUR MENTAL HEALTH
WAS NOT IN A GREAT PLACE AS
COUNTRY BEFORE THE PANDEMIC AND
I DO WORRY THE PANDEMIC HAS MADE
THIS FAR WORSE. SO ONE OF THE
REASONS CAME BACK THE YEAR PRIOR
TO THE PANDEMIC MY CONVERSATIONS
THEN WITH THE PRESIDENT ON MANY
OCCASIONS ARE COVID
CONVERSATIONS TURNED TO MENTAL
HEALTH CONVERSATIONS AND WE
TALKED A NUMBER OF OCCASIONS HOW
THIS WAS GOING TO BE ONE OF THE
BROADER CHALLENGES WE HAD TO
DEAL WITH AS A COUNTRY IS THE
MENTAL HEALTH, CHALLENGES FACING
ACROSS THE SPECTRUM, THAT IS A
KEY REASON I WANTED TO COME BACK
AN SERVE WAS TO TRY TO MAKE
CONTRIBUTIONS ON THAT FRONT AS
WELL. SO THAT WE CAN EVEN AFTER
PANDEMIC IS IN A REAR-VIEW
MIRROR WE CAN TACKLE DEEPER ROOT
CAUSES OF MENTAL HEALTH AND WELL
BEING. SO SOME OF THE -- I
MENTION THAT BECAUSE THE
PRIORITIES THAT I WILL SHARE
WITH YOU TODAY THAT WE ARE
WORKING ON INITIATIVES, THEY ARE
TIED TOGETHER BY THAT COMMON
THREAD WHICH IS HOW DO WE
ENHANCE MENTAL HEALTH AND WELL
BEING FOR DIFFERENT POPULATIONS
IN OUR COUNTRY AND ALSO IN
DIFFERENT SPACES WE OCCUPY
WHETHER SCHOOL, WORKPLACE OR THE
PUBLIC SQUARE. SO WITH THAT, LET
ME WALK THROUGH INITIATIVES WE
HAVE AND PROGRESS ON THEM. I
KNOW WHEN MY DIRECTOR OF SCIENCE
POLICY JOINED THE LAST MEETING
SHE SHARED WE LAUNCHED AN
INITIATIVE LAST YEAR ON
MISINFORMATION RECOGNIZING HOW
PROFOUND THAT CHALLENGE HAS
BECOME NOT JUST WITH COVID BUT
BROADLY WITH HEALTH. AND WE ARE
CONTINUING TO WORK, WE ISSUED A
REQUEST FOR INFORMATION
FOLLOWING OUR OFFICIAL ADVISORY
IN JULY AND COMMUNITY TOOL KIT
IN NOVEMBER. THIS REQUEST FOR
INFORMATION WAS A CALL TO THE
PUBLIC INCLUDING TECHNOLOGY
COMPANIES, TO SHARE WITH US DATA
THAT WOULD HELP BETTER
UNDERSTAND THE IMPACT HEALTH
MISINFORMATION ON DIFFERENT
POPULATIONS. THAT RFI JUST
CLOSED MAY 2 AND NOW WE ARE IN
THE PROCESS OF ANALYZING THAT
DATA. WE HAD A LOT OF
SUBMISSIONS, FROM MANY DIFFERENT
SECTORS SO WE ARE EAGER TO DIG
INTO THAT TO MAP OUT WHAT THE
NEXT STEP SHOULD BE BASED ON
THOSE FINDINGS. THAT WORK HAS
GOT TO CONTINUE OBVIOUSLY, AS A
FOOTPRINT BEYOND OUR OFFICE AND
THERE'S OTHER PARTS OF
ADMINISTRATION WORKED ON THE
HEALTH MISINFORMATION CHALLENGE
BUT THIS IS NOT GOING TO BE A
PROBLEM GOVERNMENT SOLVES ALONE
WHICH IS WHY WE ARE WORKING TO
PULL TOGETHER VARIOUS
STAKEHOLDERS INCLUDING
TECHNOLOGY COMPANIES INCLUDING
PUBLIC HEALTH AND HEALTH WORKERS
AND OTHERS SO THAT WE CAN STEP
UP AND DO OUR PART WHEN IT COMES
TO BUILDING A HEALTHY
INFORMATION ENVIRONMENT. THE
NEXT AREA WE HAVE BEEN FOCUSED
ON IS ON YOUTH MENTAL HEALTH AND
WE ISSUED AN ADVISORY IN YOUTH
MENTAL HEALTH IN DECEMBER
COUNTRY'S ATTENTION TO PROFOUND
CHALLENGES THAT WE HAVE AND NEED
TO WORK ON THREE CRITICAL AREAS,
ONE EXPANDING ACCESS TO CARE,
SECOND INVESTING IN PREVENTION
PROGRAMS WHICH ARE -- WE HAVE
MANY BUT VERY FEW ARE ACTUALLY
IMPLEMENTED AND SCALED. THE
THIRD IS IN ADDRESSING WHAT I
SEE IS THE CULTURAL COURSE
IMPACTING OUR ABILITY TO TACKLE
MENTAL HEALTH, SIGMA AND SHAKE
THAT -- STIGMA AND SHAME THAT
SURROUND CONDITIONS THAT
COMPRISE MENTAL HEALTH AND
PREVENT PEOPLE FROM COMING
FORWARD AND ASKING FOR HELP. SO
THAT IS RECEIVED -- BEEN
RECEIVED WELL IN PART BECAUSE SO
MANY PARENTS AND YOUNG PEOPLE
HAVE BEFORE STRUGGLING AND
RESONATED WITH BROADER CALL TO
ACTION. SO WE HAVE A SERIES OF
ACTIONS WE ARE PLANNING LIKE
OVER THE NEXT FEW MONTHS TO
BRING TOGETHER STAKEHOLDERS TO
MAKE CONCRETE COMMITMENTS AND
HELP SUPPORT WHAT WE THINK IS
CRITICAL ELEMENT OF MAKING THIS
BROADER WORK WHICH IS TO HELP
BUILD A LED MOVEMENT TO TAKE ON
THESE MENTAL HEALTH CHALLENGES
AND BE ADVOCATES, RAISE
COMMUNITY AWARENESS AND DRIVE
CHANGE AND IMPLEMENTATION OF
PROGRAMS. SO LOT MORE TO COME ON
THE YOUTH MENTAL HEALTH FRONT.
THE LAST FEW I WILL MENTION, ONE
IS OUR ADVISORY THAT WILL BE --
THIS IS PUBLIC NOT YET KNOWN BUT
WORKING ON ADVISORY ON HEALTH
WORKER WELL BEING RECOGNIZING
THE PROFOUND BURN OUT WE HAVE
SEEN AMONG NURSES DOCTORS,
PUBLIC HEALTH WORKERS AND OTHERS
WHO HAVE DEDICATED THEMSELVES TO
SAFEGUARDING OUR HEALTH BUT
REALLY ARE PAYING A PRICE FOR IT
ESPECIALLY DURING THIS PANDEMIC.
WE HAVE SEEN EXTRAORDINARY
INCREASES IN THE NUMBER OF
HEALTH WORKERS SAYING THEY ARE
EXPERIENCING ANXIETY AND
DEPRESSION AND BURN OUT AND
INDICATING THEY ARE GOING TO
DROP OUT, IN FACT OF THE
PROFESSION AND NUMBER ALREADY
HAVE. THE NUMBER OF PEOPLE IN
PUBLIC WHO ARE SAYING THEY
CANNOT MAKE APPOINTMENTS WITH
PRIMARY CARE DOCTOR BECAUSE
THEIR DOCTOR DROPPED OUT AND IS
NO LONGER PRACTICING MEDICINE IS
REALLY ASTONISHING AND SO THE
ISSUE OF BURN OUT CONSEQUENCES
NOT JUST FOR COVID CARE BUT
BROADER HEALTHCARE PEOPLE
RECEIVE. SO MY FEELING IS THE
PUBLIC DOESN'T FULLY RECOGNIZE
YET IMPLICATIONS OF BURN OUT FOR
THEIR OVERALL HEALTH CARE AND
ACCESS TO CARE AND SO WHAT WE
WANT TO DO IS MAKE THIS NOT JUST
A NICHE ISSUE THAT ONLY NURSES
AND DOCTORS AN PUBLIC HEALTH
WORKERS CARE ABOUT BUT MAKE THIS
A NATIONAL PRIORITY SO WE SEE
OUR WELL BEING IS TIED TO
ENSURING WE CARE FOR PEOPLE WHO
HAVE BEEN CARING FOR US. WE ARE
LOOKING TO LAY OUT AN AGENDA
WHAT WE HAVE TO DO TO ADDRESS
THAT EVERYTHING FROM MAKING
BETTER HEALTH SERVICES AVAILABLE
TO HEALTH AND PUBLIC HEALTH
WORKERS TO MAKING SURE THAT WE
REDUCE THE ADMINISTRATIVE BURDEN
ON MANY OF OUR CLINICIAN,
RECOGNIZING THAT OVER THE YEARS
THERE IS MORE WORK COME IN
BETWEEN THEM AND PATIENTS
SEEKING TO SERVE WHICH IS MADE
BOTH PATIENTS AND HEALTHCARE
PROVIDERS UNHAPPY BUT WE ALSO
KNOW KEY PART HAS TO BE SHIFTING
WITHIN TRAINING PROGRAMS AND THE
INSTITUTIONS THEMSELVES, THE
CULTURE IS ONE THAT PRIDES OR
DEFINES STRENGTH AS COMING HOURS
PEOPLE CAN WORK AND HOW MUCH
PEOPLE CAN PUT UP WITH IN TERMS
OF PAIN AND BURDEN. AS OPPOSED
TO REALLY VALUING AND
PRIORITIZING THE QUALITY OF CARE
THEY ARE DELIVERING AND
COMPASSION AND EMPATHY AT THE
BEDSIDE, THOSE THINGS MANY IN
PUBLIC MAKE FOR A GOOD DOCTOR OR
HEALTHCARE EXPERIENCE WHICH
TURNS OUT AREN'T SO OBJECTIVELY
VALUE WHETHER IN THE PROMOTIONS
PROCESS IN MEDICAL SCHOOLS OR IN
THE TRAINING PROGRAMS THAT WE
PUT MANY WORKERS THROUGH. THAT
IS -- THAT SHOULD BE COMING OUT
SOON, WE DON'T HAVE EXACT DATE
FOR THAT BUT WE ARE EXCITED FOR
THAT. THE LAST TWO I WILL
MENTION IS WE HAVE AN INITIATIVE
AROUND THE WORKPLACE WELL BEING,
I WILL BE HONEST IT WASN'T ON MY
RADAR YEAR AND A HALF AGO
SOMETHING TO BUILD INITIATIVE
AROUND, BUT IT CAME UP BECAUSE
WE KEPT HEARING FROM EMPLOYERS
WHO WERE SAYING LOOK MY WORKERS
ARE DROPPING OUT, HAVING HARD
TIME RECRUITING PEOPLE WHAT IS
GOING ON, IS THIS ABOUT PAY OR
SOMETHING ELSE? NOT SURPRISINGLY
TO MANY OF YOU THIS IS NOT JUST
PAY, IT WAS IN FACT OTHER
THINGS, IT WAS ABOUT PEOPLE
WANTING THE FLEXIBILITY SO THEY
CAN BE THERE FOR THEIR FAMILIES
AND THE WAY THAT SOME OF THEM
HAD THE CHANCE DURING THE
PANDEMIC BUT MANY ALSO REALIZE
DURING THE PANDEMIC THEY WANTED
TO LIVE LIVES DIFFERENTLY, PRIA
YOUR ADVERTISE PERHAPS FAMILY
MORE SPEND MORE TIME WITH
FAMILY, NOT AS MUCH TIME
COMMUTING, HAVE ABILITY TO
RESPOND TO FAMILY, SAFE ENOUGH
TO FEEL GUILTY ABOUT IT. AS
EMPLOYERS CONSIDERED WHAT TO DO
GOING FORWARD OUR THESIS HAS
BEEN THAT WORKPLACES CAN AND
SHOULD BE ENGINES FOR MENTAL
HEALTH AND WELL BEING. THEY
SHOULD CONTRIBUTE OVERALL SENSE
OF WELLNESS. IN SOCIETY AND THEY
CAN, IN FACT WE ARE LOOKING TO
DO IS PUT OUT A BLUEPRINT FOR
WORKPLACES ON HOW THEY CAN IN
FACT BE THOSE ENGINES FOR WELL
BEING AND LAYING NUMBER OF STEPS
THEY CAN TAKE TO DO THAT.
FINALLY THE INITIATIVE I'M
PARTICULARLY EXCITED ABOUT IS WE
HAVE AN INITIATIVE ON CONNECTION
AND COMMUNITY THAT WE ARE GOING
TO BE RELEASING HOPEFULLY BEFORE
THE END OF THE YEAR, THAT IS OUR
GOAL. I WILL TELL YOU WHERE THIS
COMES FROM, LAST STINT I WAS
ALREADY STARTING TO HEAR STORY
PEOPLE WHO WERE SPEAKING OF
THEIR STRUGGLES WITH LONELINESS
AND ISOLATION AND THESE WERE
PEOPLE ACROSS THE AGE SPECTRUM,
LOOK AT DATA YOU FIND YOUNG
PEOPLE IN PARTICULAR SEEM TO BE
REPORTING THE HIGHEST LEVELS OF
LONELINESS AND ISOLATION WHICH
IS COUNTER INTUITIVE TO SOME
YOUNG PEOPLE ARE CONNECTED BY
TECHNOLOGY WHAT COULD BE THE
PROBLEM THERE? BUT TURNS OUT NOT
SURPRISINGLY THAT HAVING
THOUSAND FOLLOWS ON INSTAGRAM
DOESN'T CONVEY THE FEELING LIKE
YOU TRULY BELONG AND YOU ARE
VALUED AND SEEN FOR WHO YOU ARE.
WE ARE LITERALLY HEARING THAT
DIRECTLY FROM YOUNG PEOPLE AS WE
DO ROUND TABLES AROUND THE
COUNTRY BUT THERE ARE BROADER
CHALLENGE OF LOAN INESS AND
DISCONNECTION HAS PROFOUND
IMPLICATION FOR PHYSICAL AND
MENTAL HEALTH, ANXIETY
DEPRESSION PREMATURE DEATH,
HEART DISEASE, NUMBER OF OTHER
PHYSICAL AND MENTAL HEALTH
COMPLICATIONS. SO AS COUNTRY WE
HAVE NOT HAD A NATIONAL STRATEGY
ON HOW TO ADDRESS LONELINESS AND
DISCONNECTION AND HOW TO REBUILD
COMMUNITY, WHICH WE KNOW IS
ESSENTIAL NOT JUST TO HEALTH BUT
NUMBER OF OTHER THINGS WE CARE
ABOUT. WE KNOW PEOPLE STRUGGLE
WITH LONELINESS, THEY ARE
PRODUCTIVITY IN THE WORKPLACE IS
LOWER, RETENTION IS MORE
CHALLENGING AND CREATIVITY TENDS
TO REGISTER AT LOWER ENDS OF THE
SCALE VERSUS WHEN THEY FEEL
CONNECTED TO PEOPLE AROUND THEM,
THE ON SITS IS TRUE. WE KNOW IN
SCHOOL KIDS ARE MORE CONNECTED
THAT THAT HAS IMPACT ON THEIR
ACADEMIC PERFORMANCE ON THEIR
OVERALL SENSE OF WELL BEING. AS
WE THINK ABOUT HUMAN CONNECTION,
HOW TO FOSTER HOW TO BUILD
COMMUNITY, WE RECOGNIZE THAT HAS
POWERFUL IMPLICATIONS FOR HEALTH
BUT ALSO FOR SOCIETY MORE
BROADLY. AND LASTLY CONSIDER
THIS, DURING THIS PANDEMIC WHAT
DO WE SEE? IN THE BEGINNING OF
THE PANDEMIC A COUNTRY CAME
TOGETHER DURING TIME OF CRISIS
BUT AS CRISIS PERSISTED THE
COUNTRY SPLINTERED IN MANY WAYS.
IF YOU LOOK AT COUNTRIES THAT
DID WELL OVERALL AROUND THE
WORLD IT WASN'T THOSE THAT IN
TERMS OF COVID, SPECIFICALLY, IT
WAS THE COUNTRIES THAT HAD THE
MOST MONEY, IT WAS THE COUNTRIES
THAT HAD THE MOST TRUST AND
SOCIAL COHESION. THAT HAS
DECLINED IN THE UNITED STATES
OVER DECADES, THIS IS WORK THAT
DATA WELL DOCUMENTD BY ROBERT
SHOWING STEADY DECLINE IN SOCIAL
CAPITOL IN PARTICIPATION AND
SOCIAL ORGANIZATIONS AND
COMMUNITY ORGANIZATIONS, AND
SOCIAL TIES OVER THE LAST 40 TO
50 YEARS. SO WE HAVE TO REVERSE
THAT TREND IF WE TRULY WANT THE
BUILD WHAT I THINK AS MOST
IMPORTANT SOCIAL SAFETY NET THAT
WE HAVE WHICH IS OUR
RELATIONSHIPS WITH ONE ANOTHER.
AND SO THAT IS PUTTING SOCIAL
CONNECTION ON THE MAP IS AN
ISSUE OF PUBLIC HEALTH AND
NATIONAL CONCERN, LAYING OUT
AGENDA HOW WE ADDRESS IT
BRINGING ORGANIZATION TO
INDIVIDUALS TOGETHER TO ACTUALLY
START DOWN THAT PATH BUILDING
STRONGER CONNECTIONS. THAT WILL
BE THE WORK OF OUR INITIATIVE ON
CONNECTION AND COMMUNITIMENT I
SAID A LOT SO LET ME JUST PAUSE
THERE. SAY THANK YOU AGAIN FOR
THE OPPORTUNITY TO SHARE SOME OF
THIS WITH YOU AND IT GOES
WITHOUT SAYING ANY WAYS WE CAN
WORK TOGETHER WITH THE NATIONAL
LIBRARY OF MEDICINE MORE THAN
WELCOME THE OPPORTUNITY TO DO
SO. TURN IT BACK TO YOU NEIL.
>> THANK YOU, DR. MURTHY. THANK
YOU FOR TELLING US ABOUT THOSE
PRIORITIES. ALL OF THEM SOUND
VERY PRESSING AND I THINK WE CAN
ALL IDENTIFY WITH EACH OF THOSE.
I OPEN UP TO THE BOARD FOR
COMMENTS OR QUESTIONS FOR DR.
MURTHY. I'M PARTICULARLY
INTERESTED AS I IMAGINE MOST OF
MY COLLEAGUES ARE WITH GIVEN
NATURE OF OUR ORGANIZATION AND
HEALTH INFORMATION, THE BUSINESS
WE ARE IN. COULD YOU SPEAK A BIT
MORE ABOUT THE INITIATIVE AND
THE FUNDING OPPORTUNITY THAT YOU
HAVE IDENTIFIED THROUGH YOUR
OFFICE. ENLISTING DIFFERENT
PARTNERS TO RESPOND TO THIS.
>> ABSOLUTELY. I'M GLAD YOU
ASKED TO REALLY ADDRESS THE
HEALTH MISINFORMATION CRISIS IT
WILL TAKE A LOT OF STAKEHOLDERS
ENGAGING. WE KNOW MISINFO IS ON
YOU BUT WE SEEM SEEN THE SPEED
AND SCALE IT SPREADS HAS TRULY
BECOME UNPRECEDENT AND THE
SOPHISTICATION ALSO WHETHER
MISINFORMATION AS PRESENTING
ITSELF IS ALSO SOMETHING WE
HAVEN'T QUITE SEEN TO THIS
DEGREE WHICH IS WHY IT'S HARD
FOR PEOPLE TO RECOGNIZE WHAT IS
TRUE AND NOT INCLUDING PEOPLE IN
THE HEALTHCARE FIELD. SOMETIMES
I WILL OFTEN GET MESSAGES FROM
FELLOW NURSES AND DOCTORS WHO
ARE SAYING HEY, IS THIS TRUE?
THEY COME ACROSS A PIECE OF
MISINFORMATION AND LOT OF TIMES
IT IS NOT BUT HARD TO
DISTINGUISH SO KEY THINGS THAT
ACTIONS THAT ARE CRITICAL, ONE
IS IN ADDITION TO GETTING -- WE
HAVE A STREAM ON TECHNOLOGY
COMPANIES WE LAID OUT IN
ADVISORY WHERE WE NEED COMPANIES
TO STEP UP AND BE TRANSPARENT IN
WHAT THEY ARE SEEING IN TERMS OF
SPREAD OF MISINFORMATION. WHICH
GROUPS ARE BEING TARGETED, WHAT
MISINFORMATION SEEMS TO BE MOST
SUCCESSFUL AT SPREADING. WHAT
TECHNIQUES ARE WORKING TO CURVE
SPENDING MISINFORMATION VERSUS
NOT. THESE ARE CRITICAL THINGS
TO KNOW SO WE CAN DEVELOP INVEST
TIME AND ENERGY IN THE RIGHT
PLACES BUT EVEN APART FROM
TECHNOLOGY COMPANIES, RECOGNIZE
BROADER CHALLENGE WHEN IT COMES
TO DIGITAL HEALTH LITERACY THAT
MANY PEOPLE DO NOT HAVE, SCALES
OR TOOLS TO BE ABLE TO
UNDERSTAND HEALTH INFORMATION
AND UNDERSTAND HOW TO
DISTINGUISH TRUE VERSUS FALSE
HEALTH MISINFORMATION. THIS GOES
BEYOND MISINFORMATION ITSELF TO
UNDERSTANDING JUST WHAT THE
PROCESS OF SCIENCE IS LIKE.
DURING COVID AS MANY OF YOU
KNOW, WE SAW SCIENTIFIC
DISCUSSION HAPPENING IN THE
OPEN. NEW DATA WOULD COMMENT,
PEOPLE ON TWITTER AND ANOTHER
PLATFORMS WITH SCIENTIFIC
BACKGROUNDS DISCUSS TAKES ON
DATA, THEY DIDN'T ALWAYS AGREE,
NOT SURPRISING TO US WITH
PERHAPS HAVE BEEN PART OF
SCIENTIFIC BODIES IN THE PAST.
TO PUBLIC SOME MEMBERS OF PUBLIC
IT WAS DISCONCERTING TO SEE
DISAGREEMENT BETWEEN HEALTH
PROFESSIONALS OR SEE THEM SAY
ONE THING TODAY AND SAY
SOMETHING ELSE THREE MONTHS
LATER WHEN THE DATA CHANGED. I
KNOW BECAUSE WE HEARD FROM
PEOPLE IN PUBLIC WHO THROUGH UP
THEIR HANDS AND SAY THEY HAVE NO
IDEA WHAT TO TALK ABOUT AND THEY
SAID ONE THING YESTERDAY AND
THREE MONTHS LATER DIFFERENT,
THIS IS CONFUSING. THEY DON'T
AGREE ON THE DATA, THEY MUST
HAVE NOT HAVE THE RIGHT SKILL
SET, CAN'T LOOK TO THE DATA AND
UNDERSTAND WHAT THE ANSWER IS.
IT IS -- YOU CAN UNDERSTAND
WHERE THIS PERSPECTIVE COMES
FROM BUT FUEL A DIS-- GREATER
MISTRUST IN SCIENCE AND
SCIENTIFIC PROCESS AND
SCIENTISTS AND EMBODIES
REPRESENT SCIENCE AND PUBLIC
HEALTH. WE ARE NOT GOING TO --
WE SHOULDN'T I DON'T THINK ROLE
BACK PROCESS OF SCIENTIFIC
DISCUSSION HAPPENING IN MORE
PUBLIC SQUARE. THERE ARE
BENEFITS TO THAT. WE DO WHAT WE
NEED TO DO FIGURE HOW EQUIPMENT
EMPOWER THE PUBLIC WITH TOOLS TO
UNDERSTAND THE SCIENTIFIC
PROCESS, UNDERSTAND WHAT IS
TRUE, WHAT IS NOT. UNDERSTAND
WHAT SOURCES ARE CREDIBLE VERSUS
NOT. BETTER EQUIPPED TO DEFEND
THEMSELVES AGAINST CHALLENGES.
IT IS DOABLE LIKE IF WE KNOW FOR
EXAMPLE WHEN PEOPLE ARE TOLD IT
IS GOING TO RAIN ON THURSDAY,
AND THEN MONDAY COMES ALONG,
TUESDAY, AND THEN THE WEATHER
FORECAST CHANGES, ACTUALLY CLEAR
SKIES ON THURSDAY, PEOPLE MIGHT
BE LIKE THEY GOT IT WRONG THIS
TIME BUT THEY ARE LIKE
METEOROLOGISTS -- I WON'T PAY
ATTENTION TO WHEN A HURRICANE IS
COMING TOWARD MY CITY BECAUSE
THEY GOT THE FORECAST FOR RAIN
WRONG ON THURSDAY. PEOPLE DON'T
NECESSARILY THINK THAT BECAUSE
OVER TIME WE HAVE GOTTEN PEOPLE
TO UNDERSTAND THE WEATHER
FORECASTS ARE NOT 100%, WE ARE
PRETTY GOOD TELLING YOU IF A
HURRICANE IS COMING OR MAJOR
WEATHER EVENT IS COMING BUT THE
QUESTION IS CAN WE GET THERE ON
OTHER ASPECTS OF SCIENCE. THERE
IS MORE THAT WE WANT OTHER
SECTORS TO DO LIKE HEALTH
WORKERS YOU WANT THEM TO HAVE
MORE VOICE IN PUBLIC SQUARE, WE
WANT TEACHERS AND EDUCATORS
ENGAGED IN PROCESS OF BUILDING
DIGITAL HEALTH LITERACY, THIS IS
A PLACE NLM HAS AN IMPORTANT
ROLE TO PLAY AND VOICE TO HELP
BUILD THAT DIGITAL HEALTH
LITERACY THE COUNTRY DESPERATELY
NEEDS.
>> GREAT. THANK YOU. I THINK
THAT THOSE ARE REALLY KEY ISSUES
FROM I THINK MANY OF OUR
EXPERIENCES. PERSONALLY AND
PROFESSIONALLY THE LAST COUPLE
OF YEARS LOOKING AT STRUGGLES
PEOPLE HAVE WITH DIGITAL HEALTH
LITERACY IN PARTICULAR, AND THE
PANDEMIC FLOW BELOWING THIS UP,
MUCH MORE THAN OTHERWISE WOULD
BE THE CASE IN OUR EXPERIENCES.
WE HAVE A NUMBER OF QUESTIONS
LINED UP AND I WILL MOVE ON TO
LOURDES BAEZCONDE-GARBANTI.
>> THANK YOU, NEIL. THANK YOU,
DR. MURTHY FOR BEING HERE AND
FOR THAT ENCOURAGING NEWS. MY
QUESTION IS RELATED TO DIVERSITY
EQUITY INCLUSION AND THAT
FEELING OF BELONGING AND I WAS
WONDERING IF YOU CAN COMMENT
WHAT WAYS THESE INITIATIVES
MAYBE CLOSELY TIED TO THOSE
KINDS OF ISSUES AS WELL IN OUR
VARIOUS COMMUNITIES.
>> LOURDES, SO GLAD YOU ASKED
THAT, I THINK THEY ARE UNIQUELY
TIED. YOU USE THE WORD
BELONGING IN YOUR REMARKS WHICH
IS AT THE HEART OF OUR BROADER
INITIATIVE ON COMMUNITY
CONNECTION IS. CREATING A SENSE
OF BELONGING. WE KNOW THAT THERE
ARE NUMBER OF GROUPS RACIAL
ETHNIC MINORITIES, ETHNIC
MEMBERS AND OTHERS WHO OVER TIME
FELT MARGINALIZED AND FELT THEY
DIDN'T BELONG, THEY WERE NOT
PART OF BROADER SOCIETY OR
COMMUNITY. THAT HAS REAL
IMPLICATIONS FOR HEALTH. SO MANY
SOME WAYS I SEE OUR INITIATIVE
HELPING TO HIGHLIGHT SOME OF THE
CHALLENGES THAT ARISE AND
CONSEQUENCES. WHEN GROUPS ARE IN
FACT MARGINALIZED AND LEFT OUT.
I THINK THIS IS OUR OPPORTUNITY
ALSO THEN TO ACT ON THAT AND TO
SAY IN THE CLASSROOM IN OUR
NEIGHBORHOODS IN OUR WORKPLACES
HOW DO WE CREATE SPACES WHERE
PEOPLE TRULY FEEL LIKE THEY
BELONG. THAT MEANS FOSTERING
CONNECTIONS WITH PEOPLE WHO HAVE
DIFFERENT BACKGROUNDS THAN US,
RECOGNIZING THAT IF WE DON'T
KNOW PEOPLE IT IS HARD TO STICK
UP FOR THEM, ADVOCATE FOR THEM,
HAVE THEIR BACKS. AND THE
PANDEMIC CERTAINLY ILLUSTRATED
THAT. WE ARE ALSO ASKING LOURDES
HOPING THAT THE WORK WE DO
CANNOT BE THE LAST WORD, THAT
CAN BE JUST THE START OF BROADER
CONVERSATION THAT WOULD GENERATE
IDEAS FOR WHAT WE CAN DO TO
FOSTER THAT CONNECTION IN OUR
NEIGHBORHOODS. I SUSPECT IF WE
DO THIS RIGHT WE WON'T HAVE ONE
SINGLE PROGRAM THAT WE -- ROLLS
OUT NATIONALLY CREATE
CONNECTIONS EVERYWHERE. BUT THEY
WILL IN FACT CREATE IN BROADER
NATIONAL NARRATIVE, A NATIONAL
MOMENT MAXIMUM THAT WILL FUEL
NUMBER OF LOCAL INITIATIVES
WHERE PEOPLE TAKE UP
RESPONSIBILITY FOR THEIR
NEIGHBORHOODS, FOR THEIR SCHOOLS
FOR THEIR WORKPLACES AND CREATE
THE STRUCTURES AND PROGRAMS THAT
CAN HELP PEOPLE KNOW ONE ANOTHER
AND TRULY CREATE A SENSE OF
BELONGING. SO THAT TO ME IS THE
KIND OF EQUITY AND INCLUSION
THAT I HOPE WE CAN CREATE ACROSS
AMERICA. PETER? I DIDN'T SEE
YOUR HAND UP.
>> THANK YOU, DR. MURTHY. THIS
WAS VERY INSPIRING AGENDA THAT
YOU LAID OUT FOR US. AS YOU
PROBABLY ARE AWARE, THE NATIONAL
LIBRARY OF MEDICINE FOR A LONG
LONG TIME TO TRY TO CREATE A
PAST YEN FOR AUTHORITATIVE
HEALTH INFORMATION PEOPLE CAN
COME TO, HAVE YOU THOUGHT
INFORMATICS CROWD YOU ARE
SPEAKING WITH SO WE INNOVATE IN
THE SPACE AS YOU PROBABLY ARE
AWARE, HAVE YOU THOUGHT ABOUT
CREATING A SOFTWARE THAT IS
EMBEDDED IN SOCIAL MEDIA TO
AUTHENTICATE STATEMENT AGAINST
WHAT IS IN MEDLINE PLUS AND
PROVIDE BACK A RATING FOR THE
QUALITY OR THE LIKELIHOOD OF --
THIS INFORMATION IS
AUTHORITATIVE VERSUS THAT IT IS
A MISINFORMATION OF SYSTEM SORT
OR ANOTHER, THAT PERMEATE SOCIAL
MEDIA STREAMS AND PROVIDE PEOPLE
WITH RATINGS THAT WOULD BE IN
THEIR FACE? IN BEHAVIORAL THEORY
THE MORE SPECIFIC ADVICE AND
MORE OFTEN YOU GIVE THE MORE
LIKELY TO BE ADHERED TO. SO
REALLY HOPING THAT GIVEN THESE
FACTS AND THE WONDERFUL RICHNESS
THAT THE LIBRARY YOU MIGHT
CONSIDER WORKING WITH LIBRARY ON
THIS INITIATIVE TOWARD BETTER
AMERICA.
>> THAT IS A GREAT SUGGESTION
AND I LOVE THOSE IDEAS, I DO
THINK THAT THESE ARE THE KIND OF
SOLUTIONS THAT WE SHOULD BE
DISCUSSING AND WORKING ON IN
PARTNERSHIP WITH TECHNOLOGY
COMPANIES, PART OF WHAT WE WANT
TO UNDERSTAND ALSO IS WHAT HAVE
THEY TRIED. WHAT TOOLS HAVE THEY
BUILT INTERNALLY, WHAT WORKED
WHAT HASN'T WORKED. THOSE ARE
ALL SPACES I THINK ARE
INVALUABLE FOR US TO HAVE A
BROADER COMMUNITY OF SHARING,
TRANSPARENCIES FROM THE
COMPANIES SO IMPORTANT. I ALSO
SAY PETER TO YOUR POINT, ONE OF
THE THINGS THAT IS CHALLENGING
IS TO FIGURE OUT WHO IS IN FACT
THE ARBITER OF TRUTH? WHEN IT
COMES TO STATEMENTS THAT MAYBE
PUT OUT ONLINE. WE SHOULD BE
USING THE LITERATURE TO HELP
GUIDE THAT. THERE IS ALSO SOME
ELEMENT OF NUANCE HERE AS WELL.
SOMETHING MAY NOT NECESSARILY
VIOLATE SOMETHING THAT IS IN
PUBLISHED LITERATURE BUT WHERE
IF THERE IS A PAUCITY OF DATA IN
A GIVEN TOPIC, IS A QUESTION HOW
DO WE THINK OR ADJUDICATE
STATEMENTS OR HELP PEOPLE SEE
PERHAPS CLAIM THERE IS DATA WHEN
THERE IS NOT IS PROBLEMATIC. I
THINK THESE ARE DIFFERENT CASE
SCENARIOS ARE ONES TO THINK
THROUGH AS WE DEVELOP BEST
ALGORITHMS AND TOOLS IN ONLINE
SETTINGS TO BE ABLE TO RESPOND.
I THINK IT IS GOING TO TAKE
HUMAN BEINGS AS WELL. ? ADDITION
TO TECHNOLOGY THAT -- BECAUSE OF
SOME OF THE GAPS IN DATA THAT WE
WILL HAVE, IT WILL TAKE A BODY,
WHETHER GROUP BY NLM OR NATIONAL
ACADEMY OF MEDICINE, GROUP OF
BODIES LIKE THAT, THAT HAS SKILL
AND EXPERTISE AND CREDIBILITY IT
WILL TAKEN GAUGEMENT OF
LEADERSHIP AND GROUPS LIKE THAT
TO BE ABLE TO SAY HEY, IF WE ARE
UNSURE WHAT TRUE OR NOT LET'S
RELY ON COLLECTIVE JUDGMENT ON
THIS GROUP OF EXPERTS.
>> I SEE SUZANNE, NEIL I DEFER
FOR YOU, SEE IF WE CAN A CUFF
COUPLE OF QUESTIONS FROM
SUZANNE.
>> GO AHEAD.
>> I'M EXCITED BY THE VISION AND
I THINK IT BENEFITS BOOTS ON THE
GROUND IN NEW YORK CITY SOME OF
THE MOST HEALTH DATE OPERATE
POPULATIONS AND ON THE POSITIVE
SIDE, JUST SO MUCH WITH THE
MATCH WITH YOUR AGENDA, WHAT I
HAVE REALLY BEEN SEEING IS THAT
FOR THE FIRST TIME BECAUSE THEY
HAD TO, PEOPLE HAVE BECOME MORE
EFFICACIOUS ABOUT SELF
MANAGEMENT. OF THEIR ACTIVITIES
RELATED TO TESTING THEIR
CHILDREN TO PREVENTION MEASURES
TO MAKING SURE APPROPRIATE
TESTING IS GOING ON. SO I GET SO
EXCITED WHEN I HEAR ABOUT THESE
INITIATIVES BECAUSE I REALLY GET
THE FEELING THAT NOW MORE THAN
EVER BEFORE PEOPLE MAY BE MORE
READY TO TAKE ON SOME OF THESE
CHALLENGES BECAUSE I SEE LOTS OF
STRUGGLES BUT I ALSO SEE LOTS OF
NEW SKILLS AND COMPETENCIES THAT
MAKE THIS AGENDA INCREDIBLY
EXCITING AND I THINK REALLY LOOK
FORWARD TO SEEING THE RESPONSE
TO IT.
>> SUZANNE, I THINK IT IS REALLY
INTERESTING WHAT YOU POINT OUT.
I THINK PEOPLE WERE ASKED TO
TAKE ON A LOT, AND GIVE YOU SORT
OF AN EXAMPLE, MY KIDS WHO ARE
FOUR AND FIVE, EFFECTIVELY DO
THEIR OWN COVID TESTS, THEY GET
OUT THE SWABS AND PUT OUT THE
DROPS THEY JUST KNOW HOW TO DO
THESE THINGS BECAUSE THEY ARE
COVID KIDS IN THE SENSE GROWING
UP IN THIS COVID ERA. WHEN I SEE
THIS I'M REMINDED THE CAPACITY
HUMAN BEINGS HAVE TO TAKE ON
THINGS THAT I PERHAPS THOUGHT
WAS TOO COMPLEX. I THINK THE
CAVEAT TO THAT IS I THINK IT'S
BEEN CHALLENGING IN SOME WAYS
FOR FOLKS BECAUSE IN THIS
SETTING WITH COVID, SO MUCH HAS
BEEN EVOLVING RAPIDLY IN TERMS
OF RECOMMENDATIONS AND TAKE
MASKS FOR EXAMPLE, I THINK
PEOPLE ARE SO CONFUSED WHEN TO
WEAR MASKS. I DON'T BLAME THEM
BECAUSE IT IS CONFUSING, AT
TIMES BECAUSE IF YOU ARE IN A
WORLD WHERE YOU HAVE TO ASSESS
YOUR OWN RISK, BEFORE YOU MAKE
THE HEALTH DECISION, AS OPPOSED
TO WORLD WHICH YOU ARE TOLD WEAR
IT HERE DON'T WEAR IT THERE, FOR
EVERYONE, THEN THAT PUTS THE
BURDEN ON PEOPLE TO HAVE TO MAKE
THAT ASSESSMENT AND SOME CAN DO
IT EASILY AND FOR SOME IT IS
MORE CHALLENGING. BUT I DO THINK
THAT TO ME LIKE I AGREE WITH
YOU, THE PANDEMIC HIGHLIGHTED
THE FACT PEOPLE HAVE CAPACITY TO
DO MORE WITH THEIR HEALTH THAN
WE SOMETIMES PERHAPS GIVE THEM
CREDIT FOR. BUT IT IS ALSO
HIGHLIGHTED THE FACT THAT WE
HAVE TO BE AS CLEAR AS POSSIBLE
IN DIRECTION CONSISTENT AS WE
CAN BE GIVEN LIMITATIONS OF
CHANGING DATA. AND ALSO TO
RECOGNIZE THAT THERE IS SUCH A
SPECTRUM, IN AMERICA THERE IS
SOME PEOPLE WHO HAVE TOOLS AND
LUXURY TO BE ABLE TO LIKE TAKE
TIME LEARN HE IS THINGS GET
SUPPORT, HAVE THEIR QUESTIONS
ANSWERED IF NEEDED AND OTHER
PEOPLE WORKING THREE JOBS AND
TRYING TO RAISE TWO KIDS AND
DON'T HAVE ANY TIME UNTIL THEY
FIGURE THIS STUFF OUT AND NOT
PAYING ATTENTION TO THE NEWS SO
WHEN THEY DON'T KNOW WHEN STUFF
IS COMING UP SO THAT HIGHLIGHTED
THE FACT WE NEED FREQUENT TOUCH
POINTS, FOR PEOPLE WITH HEALTH,
SO SCHOOLS ARE FREQUENT TOUCH
POINT FOR PARENTS. BECAUSE THEY
HAVE TO BRING THEIR KIDS TO
SCHOOL. BUT WHEN IT COMES TO
HEALTH ESPECIALLY IF YOU DON'T
HAVE YOUR PRIMARY CARE DOCTOR,
MANY DON'T HAVE THOSE TOUCH
POINTS TO HELP. COULD THEY BE
PUBLIC LIBRARIES THAT HAVE A
ROLE IN THE FUTURE, COULD THEY
BE OTHER PLACES, LOT OF PEOPLE
GO TO PHARMACIES TO ONE THING OR
ANOTHER, PHARMACIES HAVE A ROLE
TO PLAY HELPING WITH DIGITAL
HEALTH LITERACY TO MAKING SURE
PEOPLE HAVE TOUCH POINTS, TAKE
ACTION ON HEALTH, THESE ARE
ELEMENTS OF THE NEW WORLD THAT
WE CAN IMAGINE AS WE MAKE OUR
WAY THROUGH THIS PANDEMIC. AND
START TO IMAGINE WHAT A POST
PANDEMIC WORLD LOOKS LIKE. WE
HAVE TO DO EXACTLY WHAT YOU ARE
TALKING ABOUT, WHICH IS NOT
ALLOW OURSELVES TO SAY OKAY,
SUCCESS IS FLIPPING BACK TO
2019, THE WAY THINGS WERE
PRE-PANDEMIC BE ASKING OURSELVES
HOW DO WE BUILD A BETTER WORLD
THAN WHAT WE HAD, A WORLD WHERE
PEOPLE HAVE GREATER AK SYCES TO
CARE, MORE TOOLS EMPOWERED TO
MAKE HEALTH DECISIONS WHETHER
DIGITAL HEALTH LIT THRASH IS ALL
TIME HIGH -- LITERACY IS ALL
TIME HIGH AND CONNECTED TO ONE
ANOTHER IN COMMUNITY OF MUTUAL
SUPPORT AND BELONGING. THAT IS
WHAT WE WANT TO WORK ON AND IS
POSSIBLE BUT WILL TAKE US
WORKING TOGETHER. OUR TIME IS
COMING TO CLOSE, THANK YOU FOR
THE OPPORTUNITY TO BE HERE AND
SHARE WITH YOU AND MORE SUPPORT,
THANK YOU FOR THE WORK THAT YOU
ARE DOING. NEIL FOR YOUR
LEADERSHIP, PATRICIA FOR YOUR
LEADERSHIP AT THE ORGANIZATION
AND ALL OF YOU FOR WHAT YOU ARE
DOING TO HELP GUIDE NLM AND ITS
WORK.
>> THANK YOU FOR BEING HERE DR.
MURTHY. WONDERFUL TO HEAR YOUR
VISION.
>> NEIL YOU ARE ON MUTE.
>> THANK YOU FOR JOINING US FOR
YOUR TIME DURING THIS MORNING
AND FOR YOUR FOCUS ON THESE
CRITICAL ISSUES. APPRECIATE IT
NOW WE MOVE TO APPROVE OF
MINUTES. YOU HAVE REVIEWED THE
MINUTES OF FEBRUARY 2022
MEETING. ARE THERE ANY CHANGES
OR AMENDMENTS TO THOSE MINUTES?
HEARING NONE, MAY I HAVE A
MOTION TO APPROVE THE MINUTES?
>> SO MOVED.
>> SECOND?
>> SECONDED? ALL IN FAVOR OF
APPROVING THE MINUTES, PLEASE
SAY AYE OR INDICATE RAIDING YOUR
HAND. -- RAISING YOUR HAND.
>> AYE.
>> OPPOSED? MINUTES ARE APPROVED
FOR FEBRUARY 8, 2022. PLEASE
NOTE THE ADDITION OF A PROPOSED
SPRING 2024 BOARD OF REGENTS
MEETING MAY 14 AND 15, TUESDAY
AND WEDNESDAY. NOTE THE UPCOMING
MEETINGS RELEVANT TO MEMBERS OF
THIS ORGANIZATION AAMC IN
NATIONAL IN NOVEMBER AND AMIA IN
WASHINGTON ALSO IN NOVEMBER.
WITH THAT I THINK WE CAN SWITCH
--
>> ASK WHICH OF THESE MEETINGS
WILL BE IN PERSON?
>> AS FAR AS I'M AWARE THEY ARE
>> I CAN ADDRESS THAT FOR THE
BOARD MEMBERS WHO ARE PRESENT
FIRST OF ALL GOOD MORNING, I'M
PATTY BRENNAN NATIONAL LIBRARY
OF MEDICINE. SURE YOU ARE
WOUNDING WITH WHEN WE WILL GET
BACK TOGETHER? IT IS OUR HOPE TO
HAVE OUR SEPTEMBER MEETING AS
AND IN PERSON MEETING HERE IN
WASHINGTON. OBVIOUSLY WE NEED TO
AWAIT NIH FINAL DIRECTION ABOUT
THAT, I WANTED TO WORK WITH OUR
INCOMING BOARD CHAIR WHO WILL
KNOW LATER TODAY AND ALSO WITH
THE BOARD MEMBERS SO YOU CAN
EXPECT THE HEAR FROM US OVER
SUMMER TO PLAN A MEETING IN
SEPTEMBER. NIH LARGELY IS
LOOKING AT COUNCIL MEETINGS AND
REVIEW GROUPS TO BE HAVING AT
LEAST ONE IN PERSON MEETING A
YEAR AND REMAINDER OF THE
MEETINGS ARE VIRTUAL SO YOU CAN
ENVISION FUTURE WE HAVE
SEPTEMBER LAUNCHING MEETING AS
IN PERSON AND VIRTUAL MEETINGS
FOR THE REST OF THE TIME BUT WE
NEED TO WORK OUT MORE DETAILS
WITH THAT. THANK YOU.
>> IF READY TO BEGIN I WILL
BEGIN MY DIRECTOR'S REPORT.
>> PLEASE GO AHEAD. THANK YOU.
>> THANK YOU VERY MUCH. GOOD
MORNING, EVERYONE. THANK YOU,
VERY MUCH FOR THE TIME YOU HAVE
SPENT NOT ONLY TO BE HERE WITH
THIS MEETING WITH US BUT ALSO
FOR THE TIME YOU SPEND BETWEEN
MEETINGS THINKING ABOUT US
RESPONDING TO REQUESTS AND
PARTICIPATING IN OUR WORKING
GROUPS. TODAY I'M JOINED IN THE
FOURTH FLOOR CONFERENCE ROOM
BUILDING 38A OUR BUILDING WITH
OLIVE YEAH AND DIANE AND DSOUZA,
TEN FEET ACROSS THE HAUL IS TODD
DANIELSON, COUPLE ON SITE THE
REST VIR WHICH YOU FELT THIS
REFLECT IT IS WORKPLACE AT THE
NIH NOW, RETURNING TO WORK, WE
ANTICIPATE THAT ALL STAFF WILL
BE SPENDING ARRANGING A WORKING
AGREEMENT, WORKPLACE FLEXIBILITY
AGREEMENT AND WE EXPECT THE
MAJORITY OF STAFF WILL BE ON
TELEWORK ARRANGEMENT WHERE WE
WILL BE INTO CAMPUS ONE TO TWO
DAYS PAY PERIOD AND THE REST OF
THE TIME WORKING REMOTELY. WATCH
THIS, WE HAVE LOTS OF NEW IDEAS
COMING FORWARD AND RELY ON YOUR
GUIDANCE TO TAKE FORWARD INTO
THIS NEW WAY OF WORKING. NEXT
SLIDE PLEASE. MY LEADERSHIP TEAM
IS MOSTLY HERE, DR. MCDONALD HAS
FAMILY EMERGENCY AND NOT ABLE TO
BE HERE TODAY BUT RED MINDER OF
THE LEADERSHIP TEAM ARE
AVAILABLE AND YOU WILL HEAR FROM
THEM TODAY. WE ARE DOING NEW
TRIALS WITH THE DIRECTOR'S
REPORT TO ENGAGE LEADERSHIP. I
HAVE A GREAT HONOR OF THANKING
OUR OUTGOING BOARD MEMBERS FOR
THEIR SERVICES AND APPRECIATE
THE EFFORTS THEY HAVE PUT INTO
THIS PERIOD OF TIME, YOU GUIDED
US THROUGH THE TRANSITION,
BROUGHT US TO THE OTHER SIDE AND
WE ARE THANKFUL FOR THAT, NEIL
RAM BOW AND CLAY JOHN TON, WISH
YOU THE BEST -- JOHNSTON, WE
KNOW WHERE YOU LIVE AND MAY CALL
YOU FOR FUTURE CONSULTATIONS. I
WILL TAKE TIME TO SAY GOODBYE TO
BRETT MILLER. A NEW RESPONSE
ABILITY THE NATIONAL SCIENCE
FOUNDATION AND WILL BE LEAVING A
AFTER THE BOARD TODA TODAY. THAU
TO BRENT FOR PARTNERSHIP AND HIS
SCIENCE INSPIRED US. JANE
BLUMENTHAL SERKED AS A STRATEGIC
CONSULTANT FOR TWO YEARS. JANE
HAS TAKEN ON NEW RESPONSIBILITY
IN MICHIGAN, NOT ABLE TO BE HERE
TODAY AND WILL NO LONGER JOIN US
FOR BOARD MEETINGS BUT HER
GUIDANCE HAS BEEN IMPORTANT TO
ME. NEXT SLIDE PLEASE. AS YOU
KNOW WE ARE WORKING UNDER
STRATEGIC PLAN WHICH HAS THE
THREE PILLARS OF ACCELERATING
DISCOVERY AND ADVANCING HEALTH
THROUGH DATA DRIVEN RESEARCH
REACHING MORE PEOPLE TO ENHANCE
DISSEMINATION ENGAGEMENT AND
BUILDING A WORK FORCE TORR DATA
DRIVEN RESEARCH AND HEALTH. I
WILL USE A VIDEO TO INTRODUCE
YOU TO SOME OF THE WORK
HAPPENING UNDER THE SECOND
PILLAR REACHING MORE PEOPLE IN
NEW WAYS TO SHOW WHAT THE
NATIONAL NETWORK OF NATIONAL
LIBRARY OF MEDICINE HAS BEEN
DOING IN COMMUNITIES OF NEED.
THIS VIDEO IS A LITTLE BIT
OLDER, MADE IN 2019 BUT SO GLAD
I HAVE TO SHOW IT TO YOU. IF WE
COULD GO TO THE NEXT SLIDE IN
THE VIDEO PLEASE.
>>THE GOAL OF HIS WORKSHOP IS
TO HAVE COMMUNITY PREPARED TO
RESPOND TO OPIOID OVERDOSES. WE
NEED TO BE ABLE TO ADDRESS THIS
ISSUE FROM THE GROUND UP. SOUTH
CENTRAL WAS STARTED OUT OF NEED
FOR HIV EDUCATION, IN SOUTHERN
WEST VIRGINIA AND IT WAS
ACTUALLY DEVELOPED AS A
ORGANIZATION THAT TARGETED
AFRICAN AMERICANS. AS WE GOT OUT
WE WERE DOING THE WORK IN RURAL
COMMUNITIES, IT WAS EVIDENT THAT
EVERYONE NEEDED IT. SO WE MOVE
FROM MINORITY BASED PROGRAM TO
GENERAL POPULATION PROGRAM. WE
ARE PUNNED THROUGH THE NATIONAL
LIBRARY OF MEDICINE, SUPPORTING
OUR TECHNOLOGY PROGRAM HERE IN
THE BUILDING AND MISSION IS
PRESENTING HIGH QUALITY WELLNESS
INFORMATION AND IS TRUSTED EASY
TO UNDERSTAND AND FREE.
>> WE FIRST BECAME CONNECTED IN
2012, THEIR FIRST APPLICATION
FROM US WAS BASED ON COMMUNITY
OUTREACH TO REDUCE HEALTH
DISPARITIES AND STIGMAS. THEN WE
REALIZE THERE WAS A NEED FOR
TECHNOLOGY BECAUSE HAVING A
COMPUTER LAB AVAILABLE FOR
PEOPLE AT COMMUNITY CENTER WHERE
THEY CAN LOOK UP HEALTH
INFORMATION IN GENERAL WAS
REALLY IMPORTANT
>> PROJECT TOWARDS TECHNOLOGY
OUTREACH TO REDUCE HEALTH
DISPARITIES, BEING ABLE TO
ACCESS NATIONAL LIBRARY OF
MEDICINE DATABASE GIVES TOOLS TO
TEACH PEOPLE HOW THEY CAN GO AND
FIND INFORMATION.
>> THERE IS NOT A LOT OF
OPPORTUNITIES HERE. THIS AREA
LACKS IN RESOURCES. SOUTH
CENTRAL EDUCATION DEVELOPMENT IS
THE ONLY ONE AROUND HERE HAVING
ANY IMPACT.
>>THANK YOU VERY MUCH, THANKS
TO THE OFFICE OF EDUCATION
OUTREACH EDUCATION AND TRAINING,
THIS WORK OF THE NETWORK
NATIONAL LIBRARY OF MEDICINE IS
IMPORTANT AROUND THE COUNTRY.
LET ME GO TO THE NEXT SLIDE
PLEASE. LIKE MANY OFFICE OF
EDUCATION OUTREACH EDUCATION
TRAINEES WITHIN THE DIVISION OF
LIBRARY OPERATIONS LIBRARY OF
OPERATIONS IS UNDERTAKING A LONG
RANGE PLANNING ACTIVITY TO
ENVISION THE LIBRARY IN 2036.
THEY IDENTIFY FIVE GOALS TEN
OUTCOMES AND 26 DELIVERABLES,
THE GOALS ARE ON THE SCREEN IN
FRONT OF YO YOU. MODERNIZE THE
ORGANIZATIONAL STRUCTURE, UNIFY
AND TRANSFORM THE THE COLLECTION
IS A HUGE STEP FOR US, SUPPORT
AND PROMOTE USE OF HEALTH DATA
STANDARDS AN TERMINOLOGIES
PROVIDE CUSTOMER SERVICE AND
CUSTOMER DESIGN AND EXPERIENCE
SUPPORT AND TO KNOW EQUITABLY
ENGAGE USERS, ARE PROUD OF THE
WORK THEY ARE DOING AND IT IS
VERY EXCITING THEY HAVE BEEN
ABLE TO MOVE THIS FORWARD
UNDERNEATH THIS PANDEMIC IN OUR
MAXIMUM TELEWORK. AS APRIL THIS
YEAR THE STAFF ACROSS THE
LIBRARY OPERATIONS HAVE RETURNED
TO WORK TO WORK ON THE
COLLECTION ACQUISITION AND
MANAGEMENT NOTICE BOOKS ON THE
LOWER PICTURE HERE, WE ARE STILL
PROCESSING OVER 400 BOXES OF
BOOKS THAT REPRESENT THE BACKLOG
AND TRYING TO GET THESE
MATERIALS BOTH DOCUMENTED AND --
INTO OUR COLLECTION THAT MADE
AVAILABLE TO THE PUBLIC AT
LARGE. A SIGNIFICANT PORTION OF
OUR RESPONSIBILITIES IS TO
PROMOTE PUBLIC ACCOUNTABILITY
AND USE MEMBERS OF THE NATIONAL
LIBRARY OF MEDICINE BOARD OF
REGENTS, ESTABLISH NLM
COLLECTIONS POLICY, THIS IS
INCREDIBLY IMPORTANT IN THE PAST
YEAR. AS THIS POLICY HAS SERVED
TO GUIDE CONTRIBUTION TO
SEQUENCE READ ARCHIVE ARE
PRECIOUS LARGE SEQUENCE GENOMIC
SEQUENCE DATA REPOSITORY. THE
COLLECTIONS POLICY OF THE BOARD
OF REGIONS PROMOTES THE
INTEGRITY OF PUBLIC ACCESS TO
SEQUENCE DATA. DURING THIS PAST
18 MONTHS, DURING THIS PAST 12
MONTHS, WE HAD CHALLENGES TO
MANAGE SEQUENCE REGARD
PARTICULARLY OUR PRACTICES OF
ALLOWING INVESTIGATORS TO REMOVE
SEQUENCES IF THE SEQUENCES ARE
POUND TO BE IN SOME WAY NOT
APPROPRIATE FOR PUBLIC
DISSEMINATION. WE HAD
SIGNIFICANT CHALLENGE REPORTED
IN THE PRESS OVER THE LAST YEAR
TO RESPOND TO THAT CHALLENGE, WE
EDGE GAUGED A FIRM TO CAUSE
ANALYSIS TO EVALUATE WHAT
HAPPENED AND HELP US BETTER
UNDERSTAND. OUR REPORT FROM THIS
WILL ROOT CAUSE ANALYSIS IS
RELEASED, IT IS GUIDING THE NEXT
STEP HOW WE MANAGE OUR
COLLECTIONS HERE WITHIN THE
NATIONAL LIBRARY OF MEDICINE,
THIS ONE SPECIFICALLY WITHIN
NCBI. BOARD OF REGENTS POLICY IS
IMPLEMENTD BY THE LITERATURE
SELECTION TECHNICAL REVIEW
COMMITTEE OR LISTRICC THIS IS
ANOTHER FACA THAT SUPPORT IT IS
NATIONAL LIBRARY OF MEDICINE
WORK, MEETS QUARTERLY TO REVIEW
APPLICATIONS TO INCLUDE JOURNALS
IN MED LINE COLLECTION, THIS IS
A VERY IMPORTANT WAY THAT WE
HEAR FROM THE SCIENTIFIC AND LAY
PUBLIC ABOUT THE NATURE OF THE
COLLECTION THAT WE SHOULD BE
UNDERTAKING SPECIFICALLY AS IT
RELATES TO JOURNALS. I WANT TO
TAKE A MOMENT TO REMIND YOU HOW
IMPORTANT YOUR GUIDANCE IS TO
THE NATIONAL LIBRARY OF MEDICINE
MANY THESE AREAS. BEGINNING MAY
OF 2022, THE NATIONAL LIBRARY OF
MEDICINE IS OFFERING DAILY
UPDATES OF ACCESS GOOD ID. THIS
IS A UNIQUE MEDICAL DEVICE
IDENTIFIER THAT IS IMPORTANT TO
ALOUD FOR IDENTIFICATIONS OF
VARIOUS DEVICES THAT MUST BE
EITHER SYNCHRONIZED OR MADE
AVAILABLE FOR CLINICAL CARE,
SOME OF THE WORK HERE SERVES THE
PUBLIC ENSURING DEVICES CAN BE
TRACKED IN AN APPROPRIATE WAY.
THIS DATA SET IS NOW MOVED TO
THE GOOGLE CLOUD WHICH ALLOWS IT
TO BE MORE ACCESSIBLE AROUND THE
WORLD. LET ME MOVE TO THE NEXT
SLIDE BECAUSE I WANT TO SPEAK
WITH YOU MORE ABOUT ACCESSING
ACCELERATING ACCESS TO
LITERATURE MOLECULAR DATA. AS
YOU KNOW OUR RESOURCES, HOLDINGS
ARE GROWING RAPIDLY, MORE RAPID
THAN EVER IMAGINED AND WE NEED
TO MAKE THEM AVAILABLE QUICKLY.
WE ANNOUNCED IN JANUARY OF THIS
YEAR INITIATIVE CALLED MAINE,
MATCHED ANNCATION BY MCBI AND
EMBL PARTNERS IN EUROPE. THIS IS
THE FIRST WORLDWIDE RESOLUTION
OF CRITICAL LOCATIONS ON GENES
WHERE PROTEIN CODING ERRORS MAY
OCCUR. BECAUSE WE HAVE THIS
GLOBAL AGREEMENT IT PROVIDES A
REFERENCE STANDARD FOR CLINICAL
GENOMICS AND RESEARCH. WE HAVE
INITIATED AS OF APRIL OF THIS
YEAR FULLY AUTOMATED INDEX TO
FULL SET OF MED LINE JOURNALS
THIS IS AN AUTOMATED FIRST
MACHINE INDEXING WE REDUCES TIME
TO INDEXING FOR OUR CITATIONS,
FROM MANY MONTHS TO A FEW DAYS
AND ELIMINATES BACKLOG. WE STILL
HAVE HUMAN EXPERTS HELPING WITH
INDEXING THEY PROVIDE US WITH
BOTH GUIDANCE HOW EFFECTIVELY
OUR MACHINE ALGORITHM IS WORKING
AS WELL AS RESOLVING CHALLENGES
WHEN HUMAN THOUGHT IS NEEDED TO
PROPERLY MAKE INDEX DECISION.
OUR LISTER HILL NATIONAL CENTER
FOR BIOMEDICAL COMMUNICATION HAS
BEEN -- RELEASED A VERY EXCITING
NEW IMAGE DATABASE, THIS IMAGE
DATABASE SOME EXAMPLES WHICH YOU
SEE ON THE RIGHT OF THE SCREEN
ARE ANNOTATED FIXED SMEARS FOR
PALACE MODE YUM WHICH IS A PAIR
SITE IMPLICATED IN MALARIA. THIS
REFERENCE RESOURCES VALUABLE
WORLDWIDE FOR BEING ABLE TO
ACCELERATE MACHINE UNDERSTANDING
AND WHAT WAS IMPORTANT HERE IS
ABILITY TO USE INDEXING TO USE
IMAGING RATHER THAN BETTER
DISCERN THROUGH MACHINE ANALYSIS
WHAT STAGE PARASITE WAS IN. OUR
SEQUENCE FREE ARCHIVE IS
SAILABLE THROUGH AMAZON WEB
SERVICES OPEN PLATFORM. MANY THE
LAST TWO YEARS SINCE OPENING
CLOUD BASED IMPLEMENTATION OF
SRA WE HAD 60 MILLION USER
INTERACTIONS TO OVER 18 MILLION
SEQUENCE RECORDS. IMPORTANTLY
WITHIN THIS, WAS SARS COV-2
MUTATION AND VARIANT ANALYSIS
RESULTS. WE HAVE ALSO SET UP
SOME ADDITIONAL SARS COV-2
RESOURCES TO MAKE ACCESSIBLE FOR
THE WORLD BETTER TO UNDERSTAND
THIS VIRUS THAT CONTINUES TO
PERPLEX US. NEXT SLIDE PLEASE.
WE MADE SIGNIFICANT ADVANCES IN
MEDICAL SCIENCE, THE WORK DONE
WITH LISTER HILL AS WELL AS WITH
COLLABORATION WITH NIAID,
BROUGHT TOGETHER MACHINE
LEARNING ALGORITHMS AND CLINICAL
INDICATOR ANALYSIS TO BE ABLE TO
DISCRIMINATE LOOKING ONLY AT
IMAGES BETWEEN DRUG RESISTANT
AND DRUG SENSITIVE TUBERCULOSIS.
ANOTHER TEAM WITHIN LISTER HILL
IS WORKING ON DEVELOPING A
STATISTICAL POOL THAT COMBINES
DEEP LEARNING AND COX REGRESSION
THAT SUPPORTS FIRST TIME TYING
VARIANT AND ANALYSIS OF TIME
VARIANT CO-VARIANTS. OUR
INVESTIGATORS HAVE BEEN ACTIVE
IN PUBLICATIONS WITH ALMOST 50
PUBLICATION SINCE BEGINNING OF
THE YEAR. OUR MOST CITED WORK
COMES FROM DR. KUNAN'S LAB,
COMPACT RNA EDITORS AND SMALL
CAS PROTEINS. THE IDENTIFICATION
OF NEW CAS PROTEINS OF CLINICAL
VALUE. WE HAVE AWARDED 10 NEW
EXTRAMURAL AWARDS INCLUDING
RESEARCH PROGRAM GRANTS,
SCHOLARLY WORKS AND PARTNERSHIP
WITH THE ALL OF US PROGRAM
INCLUDING ESTABLISHING LIBRARY
AMBASSADORS PROGRAM TO BRING NEW
PEOPLE INTO USING THE
RESEARCHERS WORKBENCH WITHIN ALL
OF US. THE PARTNERSHIP WITH US
IS ALMOST FIVE YEARS OLD AND
INCREDIBLY SUCCESSFUL
PARTNERSHIP BETWEEN THE NATIONAL
LIBRARY OF MEDICINE, OUR LIBRARY
OPERATIONS AND NETWORK OF
NATIONAL LIBRARY OF MEDICINE.
NEXT SLIDE PLEASE, I WILL TELL
YOU GOOD NEWS ABOUT THE BUDGET
SINCE WE LAST MET WE GOT AN
APPROPRIATION THAT IS VERY
EXCITING FOR US. IF YOU LOOK AT
THE FOURTH LINE SECOND LINE FROM
BOTTOM YOU SEE APPROPRIATION
THIS YEAR IS $479,439,000. THIS
REPRESENTS A SIGNIFICANT
INCREASE FROM LAST YEAR, IT HAS
ALLOWED US TO CONTINUE TO
SUPPORT RENOVATIONS OF OUR
BUILDING AS WELL AS EXPAND IN
OUR INFRASTRUCTURE EFFORTS.
NOTICE THE PRESIDENT'S BUDGET
LOOKS LIKE WE ARE GETTING A
REDUCTION NEXT YEAR. THAT IS
ACTUALLY ARTIFACT OF THE TIMING
OF THE APPROPRIATIONINGS
LANGUAGE, WE FULLY EXPECT THAT
OUR APPROPRIATIONS FOR THE NEXT
FISCAL YEAR WILL MEET OR EXCEED
OUR APPROPRIATIONS FOR THIS
YEAR. ANY APPROPRIATIONS
LANGUAGE THERE WAS A
SPECIFICATION THAT THE ARPAH
ADVANCE RESEARCH PROJECTS FOR
HEALTH AGENCY WOULD BE LOCATED
WITHIN HHS AND HAS NOW BEEN
ASSIGNED TO THE NATIONAL
INSTITUTES OF HEALTH. THE
DIRECTOR OF ARPA H WILL REPORT
TO THE SECRETARY AND THIS
INITIATIVE HOUSED WITHIN NIH
WILL TAKE ADVANTAGE OF THE GOOD
THINGS NIH DOES ESTABLISH A
TRACTIBILITY AND PUBLIC
ACCOUNTABILITY FOR SPENDING BUT
WILL FOCUS MORE ON HIGH RISK
HIGH REWARD RESEARCH THAT WILL
CONVERT USE DRIVEN IDEAS INTO
TANGIBLE SOLUTIONS, IT WILL
OPERATE MORE LIKE DARPA THAN THE
NIH PROCESS. LET ME TURN NOW TO
PERSONNEL UPDATES ON THE NEXT
SLIDE. I WILL PAUSE A MOMENT IN
THE NEXT SLIDE TO BRING -- WE
LOST ONE OF OUR STAFF MEMBERS
ALEXI (INDISCERNIBLE) PASSED
AWAY THIS SPRING, HE WAS A
MEMBER OF OUR NCBI GROUP, I
WOULD LOU I CAN TO TAKE A MINUTE
TO PAUSE AND HONOR OF ALEXEY
ISKHAKOV. I'M SORRY HOW OFTEN I
HAVE TO BRING THOSE
ANNOUNCEMENTS TO YOU BUT IT IS
IMPORTANT TO ACKNOWLEDGE THESE
WONDERFUL PEOPLE WHO CONTRIBUTED
TO US. NEXT SLIDE PLEASE. WE
HAVE A NEW APPOINTMENTTY SHAH
SCHROEDER JOINED CATALOG
MANAGEMENT AS HEAD OF OFFICE, IN
LIBRARY OPERATIONS GROUP AND WE
ARE SATURDAY TO NOTE THE
RETIREMENT OF PAT TUOHY WITH THE
NATIONAL LIBRARY OF MEDICINE
HISTORY MEDICINE FOR MANY YEARS,
SHE RETIRED TO GO ON TO NEW
ACTIVITIES. I WILL NOW TURN TO
DR. RICHARD PALMER ACTING
DIRECTOR OFROAMS
TO TELL YOU ABOUT OUR EFFORTS IN
THE NATIONAL LIBRARY OF MEDICINE
INSTITUTIONAL TRAINING GRANTS.
DR. PALMER.
>> GOOD MORNING. I'M HEAR TO
PROVIDE WORK WITH A QUICK UPDATE
ON THE T 15 AWARDS NLM IS IN THE
PROCESS OF MAKING. SINCE
GOVERNMENT WAS IN CR LAST
MEETING WE COULDN'T MAKE THESE
AWARDS HOWEVER MOST HAVE NOW
BEEN PROCESSED WITH A START DATE
OF JULY 1 AS ORIGINALLY
ANTICIPATED. NEXT SLIDE PLEASE.
AS YOU -- FOR THE T 15 AWARD
INFORMATION, 18 AWARDS WERE --
WILL BE MADE STARTING JULY 1.
THREE NEW INSTITUTIONS, 15
RENEWED INSTITUTIONS. THE -- OF
THESE AWARDS THREE -- NLM WILL
FUND APPROXIMATELY 170 FELLOWS
PER YEAR, 110 PRE-DOC FELLOWS,
60 POST DOC FELLOWS. THE
AVERAGE COST IS 55,000 FOR
PRE-DOCTORAL, 90,000
POST-DOCTORAL AND FOR FISCAL
YEAR 22, 11.5 MILLION IS
EARMARKED FOR THE T 15 PROGRAM.
NEXT SLIDE PLEASE. HERE IS A
LISTING OF INSTITUTIONS THAT
WILL RECEIVE T 15 AWARDS, THREE
NEW INSTITUTIONS JOINING US ARE
JOHNS HOPKINS UNIVERSITY,
UNIVERSITY OF CALIFORNIA LOS
ANGELES AND MEDICAL UNIVERSITY
OF SOUTH CAROLINA. JOHNS HOPKINS
AN UCLA HAVE PREVIOUSLY
PARTICIPATED IN THE T 15 PROGRAM
IN EARLY ITERATION. I ALSO WANT
TO BRING ATTENTION THAT THE
NATIONAL INSTITUTE OF ALLERGY
INFECTIOUS DISEASE WILL BE
FUNDING EIGHT ADDITIONAL PRE-DOC
SLOTS FOR HIV CLINICAL TRAINING
TRACK. THOSE INSTITUTIONS
INCLUDE STANFORD, COLUMBIA AND
OREGON HEALTH SCIENCES
UNIVERSITY, WILL RECEIVE THOSE
ADDITIONAL TRAINING SLOTS. I
ALSO WANT TO KNOW STANFORD
UNIVERSITY WILL BE ENTERING ITS
39TH YEAR PARTICIPATING IN THE T
15 PROGRAMS SO CONGRATULATIONS
TO STANFORD OUR LONGEST MEMBER.
THE REMAINDER OF AWARDS ARE
LISTED HERE, WILL POINT OUT
UNIVERSITY OF WISCONSIN MADISON
AND VANNED IT WILL RECEIVE NIAID
PRE-DOC SLOTS. THE T 15
INSTITUTION SELECTED HAVE
OUTSTANDING ENVIRONMENTS STRONG
BIOMEDICAL INFORMATIC AND
SCIENCE PROGRAMS AND
DEMONSTRATED HISTORY INCREASING
DIVERSITY OF THOSE TRAINED.
THIS IS A MAP DEMON
INVESTIGATING DISTRIBUTION OF
OUR PROGRAM. AS YOU CAN SEE OUR
T 15 PROGRAM IS SPREAD ACROSS
THE UNITED STATES AND BALANCE
ACROSS THE REGIONS. IF WE LOOK
EAST AND WEST THEY ARE ALMOST
EQUAL. WE ARE IN THE PROCESS OF
UPDATING THE NLM T 15 WEBSITE
INFORMATION AND MORE INFORMATION
ABOUT EACH OF THESE PROGRAMS
WILL BE ABLE TO BE FOUND ON THE
NLM T 15 WEBSITE. THANK YOU AND
IF YOU HAVE ANY FURTHER
QUESTIONS I WILL ANSWER AT END
OF THE DIRECTOR'S SESSION.
>> THANK YOU VERY MUCH, RICHARD.
NOW WE WILL TURN TO DR. VALERIE
FLORENCE, ACTING SCIENTIFIC
DIRECTOR TO BRING NEWS FROM
INTRAMURAL RESEARCH PROGRAM.
>> THANKS. I'M THRILLED TO TALK
TO YOU ABOUT TWO NEW
INVESTIGATORS WHO ARE JOINING
OUR INTRAMURAL RESEARCH PROGRAM,
ONE OF THEM IS ACTUALLY THE
DIRECTOR OF THE NATIONAL EYE
INSTITUTE DR. MICHAEL CHIANG.
HIS FOCUS IS ARTIFICIAL
INTELLIGENCE FOR DIAGNOSIS OF
EYE DISEASE. SO HE'S INTERESTED
IN REALLY REAL WORLD CARE
SOLUTIONS. AND THE DEVELOPMENT
OF CLINICAL AND IMAGE
REPOSITORIES. I'M PROUD TO
ANNOUNCE WE HAVE A NEW HIRE IN
OUR COMPUTATIONAL HEALTH
RESEARCH BRANCH. DR. JEREMY
WEISS IN THE CLINICAL DATA
SCIENCE AREA. HE WILL BE
STARTING IN JUNE. AT THAT POINT
IF WE COUNT THESE TWO WE WILL
HAVE 15, 16 INVESTIGATORS NOW
WHICH IS THE BIG MOVE FORWARD.
JEREMY'S AREAS ARE ARTIFICIAL
INTELLIGENCE, CLINICAL SCIENCES
BIOSTATISTICS, HE IS AT CASH
GIVE MELON UNTIL WE GET --
CARNEGIE MELON UNTIL WE GET HIM,
RUNNING A LAB CALLED CARE HEALTH
AND REASONING MACHINES. HE IS
FOCUSED ON APPROACHES FOR
DRAWING RESEARCH INFERENCES FROM
LARGE OBSERVATIONAL HEALTHCARE
DATA. AND I LISTED A COUPLE OF
RECENT ARTICLES OF HIS FAIRNESS
IN MACHINE LEARNING TO CORRECT
ALGORITHMIC BIAS, SUCH AN
IMPORTANT AREA. SO WE ARE REALLY
-- AND ALSO TRYING TO PREDICT
CERTAIN THINGS USING HOSPITAL
RECORDS AND OTHER RECORDS SUCH
AS MORTALITY RISK AFTER
NON-FATAL OPIOID OVERDOSE. THAT
IS MY NEWS. JUNE HE WILL BE
STARTING WITH US. ONE MORE
THING. BOTH OPHTHETI
INVESTIGATORS ARE ASSOCIATED
WITH NLM EXTRAMURAL UNIVERSITY
BASED TRAINING PROGRAMS IN THEIR
PAST. WE ARE PROUD OF THAT TOO.
>> NEXT SLIDE PLEASE.
>> HAPPY TO ANNOUNCE THIS TOO.
WE MENTIONED AT OUR PREVIOUS
BOARD MEETING, WE HAVE A
DIVERSITY DATA SCIENCE INTERN
PROGRAM WE JUST LAUNCHED THIS
YEAR AND FROM THE INTRAMURAL
RESEARCH PROGRAM. SO SUMMER
INTERNSHIPS TEN WEEKS BEGIN IN
JUNE AS WELL, WE IDIOT REACH
FROM THE SD OFFICE, FROM THE
SCIENTIFIC DIRECTORS OFFICE, AT
LOCAL HISTORICALLY BLACK COLLEGE
AND UNIVERSITY AND MINORITY
SERVING INSTITUTIONS. WE HAVE
FIVE INTERNS WE ARE THRILLED WE
HAVE FIVE INTERNS AND MATCH
WITHIN NLM INVESTIGATORS WHO ARE
GOING TO MENTOR THEM AND I
SHOWED YOU THE LIST OF WHO THE
INTERNS NAME IS FIRST,
INVESTIGATORS NAME IS SECOND. WE
ARE VERY PROUD OF THEM AND WE
ARE EXCITED ABOUT THIS PROGRAM
LOOKING FORWARD TO HAVING MORE
OF THEM AND PERHAPS LONGER
SESSIONS IN FUTURE.
>> THANK YOU VERY MUCH, VALERIE.
NOW LET'S TURN TO DR. ESCABON
WHO WILL GIVE LEGISLATION AND
POLICY UPDATE.
>> THANK YOU, PATTY, GOOD
MORNING TO EVERYONE. I WANT TO
GIVE BRIEF LEGISLATIVE AND
POLICY UPDATES AS ALWAYS
ENCOURAGE YOU TO REVIEW THE
WRITTEN UPDATE WE PROVIDE FOR
MORE DETAIL AND LINKS FOR MORE
INFORMATION. FIRST IN TERMS OF
APPROPRIATIONS IS PATTY ALREADY
ALLUDED TO, MID MARCH PRESIDENT
BIDEN SIGNED INTO LAW
CONSOLIDATED APPROPRIATIONS ACT
WHICH PROVIDES APPROPRIATION TO
THE END OF THIS FISCAL YEAR, IN
ADDITION TO INCREASE FROM NIH
AND NLM BUDGETS AS WELL AS
AUTHORIZING ARPA H, THE
APPROPRIATIONS ACT APPROPRIATED
$1 BILLION IN FUNDING FOR ARPA
H, THOSE FUNDS ARE AVAILABLE
SEPTEMBER OF 2024. PATTY
MENTIONED THAT PRESIDENT'S
BUDGET REQUEST RELEASE AT END OF
MARCH, THIS IS THE BUDGET
REQUEST FOR 2023. WITH IT NLM
CONGRESSIONAL BUDGET
JUSTIFICATION I ENCOURAGE Y'ALL
TO READ AND TAKE A LOOK AT. THIS
RELEASE OF PRESIDENT BUDGET
OFFICIALLY KICKS OFF 2023
APPROPRIATIONS PROCESS,
SECRETARY BECERA TESTIFIED
BEFORE SEVERAL SENATE AND HOUSE
COMMITTEES ON PROPOSED HHS
BUDGET AND TOMORROW DR. TABAK
WILL BE JOINED BY FIVE INSTITUTE
DIRECTORS TO TESTIFY BEFORE
HOUSE APPROPRIATIONS
SUBCOMMITTEE LABOR HEALTH AND
HUMAN SERVICES EDUCATION AND
RELATED SAY GYPSIES REGARDING
THE NIH 23 BUDGET PROPOSAL. I
ALSO WANT TO BRIEFLY TOUCH ON
TOPIC OF GENOMIC DATA SHARING
AND PANDEMIC RESPONSE, CONGRESS
IS CONSIDERING SEVERAL BILLS
RELATED TO PANDEMIC RESPONSE
THAT INCLUDE PROVISIONS RELATED
TO SHARING OF GENOMIC DATA. WE
AT NLM ARE ENGAGING DISCUSSIONS
ORGANIZED BY WORLD HEALTH
ORGANIZATION AND OTHER
ORGANIZATIONS TO IMPROVE
COLLECTION AND DISSEMINATION OF
SEQUENCE DATA TO AID FUTURE
PANDEMIC RESPONSE. TWO BILLS OF
INTEREST I WANT TO HIGHLIGHT,
THE FIRST ONE BEING THE PREVENT
PANDEMICS ACT WHICH I MENTIONED
DURING MY FEBRUARY UPDATE, SINCE
THEN THIS BILL HAS UNDERGONE
CONSIDERATION AND MARK UP BY
FULL SENATE COMMITTEE ON HEALTH
EDUCATION LABOR AND PENSION OR
HEALTH COMMITTEE AND AMENDED TO
INCORPORATE WHAT IS KNOWN AS THE
ARPA H ACT. IN ADDITION TO THAT,
I WANT TO HIGHLIGHT THE TRACKING
PATHOGENS ACT WHICH IS INTRODUCE
IN THE HOUSE IN MID MARCH AND
RELATED BILL INTRODUCED IN
SENATE IN JANUARY OF THIS YEAR.
THIS BILL WOULD REQUIRE
SECRETARY OF HHS TO SUPPORT
INTERAGENCY COLLABORATION ON
GENOMIC SEQUENCING OF PATHOGENS
AND TO STRENGTHEN AND EXPAND
RELATED ACTIVITIES BOTH CENTERS
FOR DISEASE CONTROL AND
PREVENTION AND AT NIH. LASTLY I
WANTED TO BRIEFLY MENTION TWO
OTHER BILLS OF INTEREST TO NLM
AND NIH. THE FIRST IS AMERICA
COMPETES ACT. WHICH PASSED HOUSE
IN EARLY FEBRUARY, THE SENATE
TOOK UP THE BILL AND AMEND IT BY
SUBSTITUTING IT WITH THE TEXT OF
A BILL THAT WAS PREVIOUSLY
PASSED IN SENATE IN SEPTEMBER OF
LAST YEAR, THE U.S. INNOVATION
AND COMPETITION ACT OF 2021. YOU
MAY RECALL I BRIEFLY MENTIONED
IT DURING MY SEPTEMBER 2021
UPDATE TO THE BOARD. THE WEEK
BEFORE LAST THE SENATE VOTED TO
ENTER INTO FINAL CONFERENCE
NEGOTIATIONS TO RECONCILE THE
TWO VERSIONS OF THE BILL SO THE
HOUSE VERSION AND THE SENATE
VERSION. LAST WEEK THE SENATE
ANNOUNCED TO SAY SENATE
REPRESENTATIVES THAT WILL BE
ENGAGING HOUSE REPRESENTATIVES
TO RESOLVE DIFFERENCES THE TWO
BILLS AND THAT IS SOMETHING WE
ARE MONITORING CLOSELY. LASTLY,
I WANTED TO MENTION THE RIGHT
DRUG DOSE NOW ACT WHICH WAS
INTRODUCED AT THE END OF
FEBRUARY IN THE HOUSE AND REFER
TO HOUSE COMMITTEE ON ENERGY AND
COMMERCE. THIS BILL REQUIRES
SECRETARY OF HHS TO DO THREE OR
FOUR THINGS IN COORDINATION WITH
OR IN CONSULTATION WITH OR
THROUGH THE DIRECTOR OF THE
NATIONAL HUMAN GENOME RESEARCH
INSTITUTE, THE DIRECTOR OF THE
EUNICE KENNEDY SHRIVER NATIONAL
INSTITUTE OF CHILD HEALTH AND
HUMAN DEVELOPMENT, THE DIRECTOR
OF NCBI AND DIRECTOR OF NLM SO
THOSE THINGS ARE PROVIDE AN
UPDATE ON THE IMPLEMENTATION OF
NATIONAL ACTION PLAN FOR FIRST
DRUG PREVENTION, CONDUCTED
PUBLIC AND PROFESSIONAL
EDUCATION CAMPAIGN, ON PHARMACO
TESTING AWARENESS AND PUBLISH
AWARENESS AND UTILIZATION OF
PHARMACO GENOMIC TESTING. WE HAD
AN OPPORTUNITY TO PROVIDE
TECHNICAL ASSISTANCE ON THIS
BILL EARLIER THIS YEAR. WITH
THAT I WILL TURN IT BACK OVER TO
PATTY.
>> THANK YOU VERY MUCH TO MY
CO-PRESENTERS FOR MOVING SO
QUICKLY. I'M GOING TO CLOSE
DIRECTOR'S REPORT BY REMINDING
YOU THAT ON SEPTEMBER 1, 2022,
WE WILL BE HOSTING A LONG
DELAYED KING LECTURE SYMPOSIUM
EVENT IN MON NOR OF DONALD AB
LINDEBURG OUR PREVIOUS DIREC DI.
SAC (INAUDIBLE) FROM HARVARD
UNIVERSITY WILL BE OUR LEAD
SPEAKER, HIS QUESTION WILL BE --
HIS TALK WILL BE ANSWERING THE
QUESTION WHO WILL BE THE PRIMARY
PER SEER OF AUTHORITATIVE
MEDICAL KNOWLEDGE TO THE U.S.
PATIENT? THIS EVENT WILL HAPPEN
VIRTUALLY AND IN PERSON HERE AT
THE NLM. NEIL I WILL TURN BACK
TO YOU, WE BELIEVE WE ALSO ARE
BACK ON TIME AND WE HAVE TIME
FOR SOME QUESTIONS BEFORE THE
BOARD REPORT.
>> THANK YOU, PATTY. RICHARD,
VALERIE AND TERESA FOR THE
INSPIRING WHIRLWIND OF UPDATES
AND ACTIVITY. THERE IS ALWAYS A
LOT GOING ON BUT YOU -- YOU --
IT SEEMS TO RAMP UP EACH TIME WE
HEAR FROM. LOTS OF GREAT
STUFF. OPEN TO THE BOARD FOR
QUESTIONS FROM ANYBODY. I'VE GOT
ONE VAGUE ONE ABOUT THE ARPA H
INITIATIVE AND I'M GLAD TO HEAR
THAT THAT IS SORT OF STILL
SOMEWHERE IN THE WORKS AND MAYBE
MORE ALIVE THAN IT WAS FOR A
WHILE. PATTY, DO YOU WANT TO
COMMENT MORE ON WHAT
IMPLICATIONS OF THAT MIGHT BE TO
NLM IN PARTICULAR IN TERMS OF
RELATED PROGRAMS HIGH
PERFORMANCE COMPUTING FOR
EXAMPLE, HOW THAT WOULD FOLD
INTO THE ARPA H STRUCTURE AND
PROGRAMS?
>> THANK YOU VERY MUCH NEIL,
ARPAH IS A BIT OF MOVING TARGET
WITH US, WE ARE WAITING THE
APPOINTMENT OF A INTERIM
DIRECTOR WHO WILL BE BRINGING
THIS FORWARD. THE MOST IMPORTANT
FIRST STEP WHEN THERESA
MENTIONED BUDGET HAS BEEN
APPROVED FOR $1 BILLION BUT WE
HAVE TWO YEARS TO SPEND THOSE
FUNDS. SO WE ARE NOT IN THE SAME
RUSH. THAT WILL GIVE US TIME AS
NATIONAL LIBRARY OF MEDICINE TO
ADVISE THE ARPA H OFFICE ON AND
COORDINATE WITH THEM. WE ARE
MOST CONCERNED ABOUT THE ISSUES
RELATED TO HEALTH DATA, HEALTH
DATA SHARING AND ABILITY TO
SUPPORT DATA. WE MET THE LAST
COUPLE OF WITH DARPA AND NIH
LEADERSHIP AND NOW THE INCOMING
DIRECTOR OF DATA SERVICES FOR
ARPA H TO DISCUSS THE POINTS OF
INTERSECTION BETWEEN THE
NATIONAL LIBRARY OF MEDICINE OUR
PERSPECTIVE ON PRESERVATION ON
CURATION AND DATA SHARING AND
THE UNUSUAL UNIQUE NEEDS OF THE
ARPA H ENVIRONMENT MANY WHICH
ARE PRECOMPETITIVE OR RELATED TO
THE DEVELOPMENT OF TECHNOLOGY
THAT WILL BECOME COMMERCIALIZED
BECAUSE ARPA H WILL BE WITHIN
THE NATIONAL INSTITUTES OF
HEALTH, MANY OF THE POLICIES
THAT DRIVE THE NATIONAL
INSTITUTES OF HEALTH WILL ALSO
PROVIDE UMBRELLA FOR ARPA H SO
BEEXPECT TO SEE POLICIES RELATED
TO DATA SHARING INCLUDING
APPROPRIATE PROTECTIONS WHEN
THERE IS AN INTELLECTUAL
PROPERTY QUESTION AT HAND BEING
CARRIED OUT THROUGH ARPA H. WE
ARE EXCITED ABOUT THE
POSSIBILITY THAT ARPA H WILL BE
ABLE TO MOVE IN WAYS THAT NLM
HAS NOT BEEN ABLE TO MOVE IN THE
PAST INCLUDING ENORMOUS BUDGET
TO BRING TO THE WORKPLACE TO THE
MARKETPLACE, NEW TECHNOLOGIES.
WE EXPECT WE WILL PROVIDE
TECHNICAL ASSISTANCE IN SOME
AREAS AND EXPECT SOME
INVESTIGATORS WILL BE TAPPED FOR
CARRYING OUT PROJECTS WITHIN
ARPA H. WE REMAIN VERY EXCITED
ABOUT THE POSSIBILITY THAT A NEW
TYPE OF SCIENTIFIC ENTERPRISE
WILL LEAD TO NEW KINDS OF
PUBLICATIONS, SO I HAVE BEGUN TO
TALK WITH MIKE HEURTA AND DIANE,
HOW WE CONSIDER THE PUBLICATIONS
THAT MIGHT LOOK SOMEWHAT
DIFFERENT THAN TRADITIONAL
ARCHIVE ARTICLE SO WE ARE
CONSIDERING PRE-PRINTS, WAYS TOK
A SELL RATE REPORTING OF
INFORMATION AND MOST IMPORTANTLY
WAYS TO LEVERAGE WHAT THE NLM
DOES IN PROVIDING PUBLIC
ACCOUNTABILITY FOR THE SPENDING
OF FUNDS IN RESEARCH BIOMEDICAL
INNOVATION THROUGH OPERATIONS
SUCH AS CLINICALTRIALS.GOV AND
DB GAP.
>> THANK YOU. JIM.
>> THANKS FOR THAT REPORT. I WAS
VERY GLAD TO SEE THAT THERE IS
SOME NEW INSTITUTION FUNDED
THROUGH THE T 15. BUT TWO WERE
PREVIOUSLY FUND SOD THEY ALREADY
HAD A LEG UP. AND FULL
DISCLOSURE I'M FROM ONE OF THE
INSTITUTIONS THAT HAS NOT HAD
FUNDING AND HAS -- DID NOT
SUCCESSFULLY COMPETE. WONDERING
ABOUT IF THERE IS A THOUGHT FOR
FINDING A WAY TO FUND NEW
INSTITUTIONS TO HELP THEM START
BECAUSE IT IS A CATCH 22 WITHOUT
TRAINING GRANTS, HARD TO
ESTABLISH TRAINING RECORD
ESPECIALLY SINCE 40 GRADUATES
ARE NOT COUNTED IN THE TABLES.
SO WONDERING IF WILL IS THOUGHT
ABOUT GETTING NEW INSTITUTIONS.
FUNDED. I SAY THIS FIVE YEARS
FROM NOW WHO KNOWS WHERE I WILL
BE. UNIVERSITY OF ALABAMA
BIRMINGHAM OR SOMEWHERE ELSE BUT
SEEMS LIKE THERE'S THIS CATCH
22.
>> RICHARD WOULD YOU GET -- BE
ABLE TO COMMENT ON THAT PLEASE?
>> I THINK WHAT JIM BRINGS UP IS
A CATCH 22, WITH MANY OF THESE
TRAINING PROGRAMS ACROSS NIH.
AND I THINK THE WORD OF ADVISE
IS ALWAYS THESE ARE RECOMPETED
IN CYCLES IN THAT INSTITUTION
WHO ARE WANTING TO APPLY SHOULD
BE RAMPING UP THEIR INTERNAL
TRAINING NOW DOCUMENTS AND
DEMONSTRATING THEY HAVE THE
COMMITMENT TO TRAINING AND
SUCCESSFUL TRAINING OUTCOMES. IT
DOESN'T HAVE TO BE IN THE AREA
IN OUR CASE IN BIOMEDICAL
INFORMATICS AND DATA SCIENCE BUT
TRAINING IN OTHER AREAS THE KEY
TO ANY NEW INSTITUTION IS
DOCUMENTING IT SUCCESSFUL
TRAINING. JUST BECAUSE AN
INSTITUTION HASN'T HAD A
TRAINING PROGRAM DOESN'T
DISADVANTAGE THEM, IT COMES DOWN
TO THE ENVIRONMENT AND ENSURING
THE FACULTY ARE COMMITTED TO
TRAINING, AND TRAINING OCCURS
WITHOUT MONEY SO THERE IS WAYS
TO OVERCOME THIS CHALLENGE BUT I
DO AGREE I THINK OVER THE NEXT
FIVE YEARS THAT NLM CAN ENVISION
SOME OPPORTUNITIES TO HELP
INSTITUTIONS WHO ARE INTERESTED
IN APPLYING FOR THE T 15, IF T
15 IS RENEWED, BE AS COMPETITIVE
AS AN EXISTING PROGRAM.
>> RICHARD WOULD YOU SPEAK
BRIEFLY ABOUT THE R 25 PROGRAM
YOUR TEAM LAUNCHED?
>> SURE. WE HAVE AN R 25
PROGRAM, IT IS A PROGRAM THAT IS
GOING TO ADDRESS THE PIPELINE
ISSUE OF GETTING STUDENTS FROM
UNGARAGE -- UNDERGRADUATE OR
MASTERS INTO A DOCTORAL PROGRAM
IN BIOMEDICAL INFORMATICS DATA
SCIENCE THE FOA IS ON THE STREET
NOW, THE APPLICATIONS ARE DUE AT
THE END OF THE MONTH. OUR GOAL
IS THAT THIS IS A PIPELINE
PROGRAM THAT WILL HELP ADDRESS
DIVERSITY WITHIN THIS FIELD BUT
I ALSO THINK THAT THIS IS AN
OPPORTUNITY HERE FOR OTHER
INSTITUTIONS WHO ARE INTERESTED
IN T 15 PROGRAM, THE R 25 IS
BRAND NEW PROGRAM. EVERYONE
COMES IN ON THE SAME PLAYING
FIELD. I DON'T THINK THE CATCH
22 WILL BE AT THE SAME ISSUE.
SINCE THERE WILL BE NO LONG
STANDING R 25 PROGRAM. BUT AGAIN
IT IS A WAY FOR INSTITUTIONS WHO
ARE COMMIT IN THIS AREA TO HELP
US AND HELP THE FIELD ENSURE WE
ARE BRINGING WELL QUALIFIED AND
TRAINED STUDENTS INTO THE
DOCTORAL PROGRAMS AND INTO THE
FIELD.
>> I WANT TO CALL YOUR ATTENTION
TO A COUPLE OF NIH INITIATIVES
THAT ARE ALSO FUNDING TRAINING
ACROSS THE COUNTRY. THE BRIDGE
TO AI PROGRAM, THE AIM AHEAD
PROGRAM ARE TWO LARGE
INITIATIVES FUNDED UNDER COMMON
FUND THAT ARE BRINGING ABOUT
TOGETHER ABOUT $100 MILLION INTO
DEVELOPING THE SCIENTIFIC WORK
FORCE FOR ARTIFICIAL
INTELLIGENCE. NIH NOTICING A
SHIFT FROM WHAT WAS LARGELY
INVESTIGATOR INITIATED IDEAS TO
MORE TARGETED PROGRAM IDEAS AND
THROUGH THESE TARGETED PROGRAM
IDEAS ADDITIONAL FUNDS ARE
AVAILABLE TO UNIVERSITIES AND BE
HAPPY TO PROVIDE ADDITIONAL
INFORMATION ABOUT THOSE TWO
PROGRAMS LATER. NEIL.
>> SIO SUZANNE, QUESTION?
>> GETTING BACK TO ONE OF THE
THINGS THAT TO JIM'S COMMENT,
BECAUSE OF COURSE WITH A T 32
MECHANISM LIKE THE OTHER
INSTITUTES HAVE, YOU ARE NOT
COMPETING AGAINST ALL EXISTING
PROGRAMS BECAUSE T 32s COME UP
EVERY SINGLE YEAR. I THINK ONE
OF THE THINGS THAT IS
CHALLENGING IS YOU COULD BE KIND
OF A NEAR MISS WITH THE T 15 AND
YET IT IS ANOTHER FIVE YEAR
CYCLE WHICH MAY CAUSE YOU TO
LOSE MOMENTUM SO CURIOUS IF THEY
ARE GOOD, ANY RATIONALE FOR
KEEPING EVERYONE ON THE SAME
CYCLE OR WHETHER OR NOT IT WOULD
CONSIDERING HAVING MORE OFTEN.
>> LET ME TAKE THAT OFFLINE
REPORT BACK TO REPORT BACK O YOU
INDIVIDUALLY AND TO THE BOARD IN
THE FALL. WE ARE EXAMINING A
NUMBER OF ASPECTS OF OUR
EXTRAMURAL PROGRAMS AND HOW OUR
INVESTMENTS ARE BEING DONE, IT
IS LONGER THAN WE CAN GO INTO
RIGHT NOW.
>> NEIL, I KNOW WE ARE CUTTING
INTO TIME FOR DISCUSSION OF THE
BOARD, UP TO YOU IF WE SHOULD
TAKE ANOTHER QUESTION OR WAIT
UNTIL LATER.
>> WE HAVE TIME FOR ONE MORE
QUESTION. CLAY, DO YOU WANT TO
GO AHEAD?
>> THIS IS A LITTLE BIT OF A ODD
IDEA BUT THE NEED FOR TRAINEES
IN AI AND HEALTH IS HUGE. A LOT
ARE GETTING PULLED AWAY INTO
INDUSTRY JOBS. THE SALARIES ARE
QUITE HIGH, THERE IS A SHORTAGE
OF PEOPLE WITH THIS EXPERTISE
AND GREAT THINGS ARE HAPPENING,
IT IS NOT SUCH A BAD THING THAT
MANY OF THESE TRAINEES ARE GOING
THAT WAY, BUT I WONDER WHETHER
Y'ALL HAVE CONSIDERED PARTNERING
WITH SRI TO GET THEM TO FUND
SOME ADDITIONAL PROGRAMS. THAT
OBVIOUSLY CAN'T ACCEPT MONEY
FROM INDUSTRY DIRECTLY BUT THE
FOUNDATION COULD. ARE THERE WAYS
THAT YOU COULD LOOK, MEET WITH
THOSE THAT ARE RECOGNIZING THAT
THEIR WORK FORCE NEEDS IN THIS
AREA AND COME UP WITH A CREATIVE
AND COLLABORATIVE APPROACH TO
INCREASE THE SLOTS BECAUSE
CLEARLY THERE ARE MANY PLACES AS
WE JUST HEARD THAT ARE READY TO
TRAIN MORE. BUT DON'T HAVE
RESOURCES TO DO THAT AND BECAUSE
WE ARE NOT TRAINING ENOUGH WE
DON'T HAVE ENOUGH PEOPLE DOING
THIS WORK AND IT IS DRIVING UP
SALARIES.
>> RICHARD WOULD YOU LIKE TO
COMMENT OR TAKE THAT ONE?
>> I WILL SAY CLAY WE HAVE HAD
CONVERSATIONS WITH THE T 15
DIRECTORS ABOUT PARTNERSHIPS. IT
IS ABOUT AN AVENUE TO EXPLORE
BUT ALSO BUDGETARY ISSUE FOR
NLM. WE WANT TO FUND AS MANY
INSTITUTIONS AS POSSIBLE THIS --
A PUBLIC PRIVATE PARTNERSHIP IS
AN OPPORTUNITY, BUT IT IS ALSO
SOMETHING THAT INSTITUTIONS CAN
LOOK INDEPENDENT TO. PATTY BACK
TO YOU.
>> THE QUESTION HAS COME UP
ACROSS THE NIH NOT JUST T 15 BUT
T 32 ALSO BECAUSE WE SEE
COLLEAGUES IN BASIC BIOLOGICAL
SCIENCES DRAWN TO INDUSTRY,
CERTAINLY ANYONE WHO HAS
TECHNICAL OR PHYSICS FOCUS IS
MOVING QUIC QUICK. WHAT WE ARE
FINDING IS MOST EFFECTIVE IS
WHEN WE CAN ENCOURAGE HOST
INSTITUTIONS TO USE THE T 15
TRAINING GRANT AS A ANCHOR FOR
INSTITUTION BASE ENGAGEMENT. ONE
AREA I HAVE NOT EXPLORED BEFORE
IS THE YOURS TRULY OF ENGAGING
THE FOUNDATION SUPPORT OF
TRAINING SO I WILL TAKE THAT ONE
FORWARD. THANK YOU VERY MUCH.
NEIL LET ME TURN TO YOU NOW.
>> THANKS, PATTY, AND TO KEY
LEADERSHIP TEAM NLM FOR THAT
INSPIRING DISCUSSION AND GREAT
OVERVIEW. THANKS FOR YOUR WORK.
WE NOW TRANSITION TO REPORT ON
THE BOARD WORKING GROUP
EVALUATION REPORT. IF I CAN HAVE
SLIDE PUT UP BEFORE YOU THERE.
BACKGROUND ON THIS, TO CATCH
EVERYBODY UP WHERE WE ARE,
FOLLOWING OUR MEPTEMBERNG
IN 2021, PATTY ASKED THAT WE
CONDUCT AN EVALUATION OF BOARD
WORKING GROUPS THAT HAD AT THAT
TIME BEEN IN PLACE OR BEEN
WORKING FOR CLOSE TO THREE
YEARS. I HAVE GOOD FORTUNE TO
BE ABLE TO WORK WITH KIMBERLY
THOMAS, EVALUATION SPECIALIST,
IN THE OFFICE OF STRATEGIC
INITIATIVES NLM. KIMBERLY WAS
ABLE TO THROUGH DISCUSSIONS THAT
WE HAD DESIGN AND CONDUCT SURVEY
OF BOARD MEMBERS YOU MAY RECALL
IS CONDUCTED LAST DECEMBER AND
JANUARY. SHE WAS THEN ABLE TO
SURVEY AND INTERVIEW KEY NLM
STAFF THAT WERE PARTICULARLY
INVOLVED WITH THE WORKING
GROUPS. ANALYZE THE RESULTS AND
YOU MAY RECALL THAT THESE
RESULTS WERE PRESENTED --
FINDINGS WERE PRESENTED AT
FEBRUARY 2022 MEETING. THE DAY
AFTER THE MEETING THE BOARD
MEMBERS HAD A PARTICULARLY
LIVELY DISCUSSION ABOUT THE
RESULTS IN FEELINGS AROUND HOW
WORKING GROUPS HAVE WORKED. YOU
CAN SEE THE OVERALL PROCESS AND
SUCCESSES AND CHALLENGES ARE
OUTLINED IT IS PROBABLY
IMPORTANT TO NOTE PARTICULARLY
THAT ONE OF THE RATIONALES FOR
SETTING UP THE WORKING GROUPS
AND WORKING THROUGH THIS
STRUCTURE WAS TO PROVIDE PERMIT
MORE MEANINGFUL ENGAGEMENT WITH
BOARD MEMBERS WITH ISSUES OF
PARTICULAR IMPORTANCE TO NLM.
AND I THINK THAT WE CAN SEE FROM
THE SUCCESSES AND CHALLENGES
THAT SUCCESSES WERE WHERE THEY
WERE FAIRLY SPECIFIC AND
CONCRETE ISSUES TO CONSIDER AND
ADVISE AND WHERE THERE WAS LESS
CLARITY OBJECTIVES OR INTENT,
THERE WAS MORE DIFFICULTY IN
SORT OF FIGURING HOW THE WORKING
GROUPS CONTRIBUTE TO THIS. BUT
OVERALL WORKING GROUP STRUCTURE
AND TIME SPENT ON IT WAS SEEN AS
BEING A POSITIVE FOR MOST
MEMBERS WHERE THERE WERE SOME
RECOMMENDATIONS TO IMPROVE THE
PURPOSE OF WORKING GROUPS TO
CONSIDER OTHERS THAT MIGHT TAKE
THE PLACE OF EXISTING SET WHERE
THAT MIGHT BE INDICATED AS AS
CLEAR AS POSSIBLE IN TERMS OF
OBJECTIVES AND INTENT. POSSIBLY
ALSO ENLIST GROUP PARTICIPANTS
IN FIGURING OUT WHERE THEY
SHOULD BE BEST ASSIGNED TO THE
WORKING GROUPS BASED ON THEIR
INTERESTS AND EXPERTISE HOW TO
BALANCE THAT WITH THE NEEDS OF
THE INSTITUTION ITSELF. AND I
THINK THAT PRETTY MUCH COVERS
WHERE WE ARE WITH THIS AND
RECOMMENDATIONS MADE. ANY
COMMENTS OR QUESTIONS ADDITIONS
FROM BOARD MEMBERS OR STAFF? I
SEE ONE COMMENT FROM NANCY.
>> THANKS FOR SUMMARIZING THIS
FOR EVERYONE. IT OCCURRED TO ME
THIS MORNING AS WE WERE
LISTENING TO THE REPORTS THAT
ONE OF THE THINGS THAT I DON'T
THINK WE HAVE TALKED ABOUT
THOUGH THIS MAY BE SOMETHING
THAT WAS TALKED ABOUT AT THE
OUTSET OF THE WORKING GROUPS IS
NOTION OF WHEN IT MAKES SENSE TO
CONSIDER STARTING THE DIFFERENT
WORK GROUP OR NEW WORK GROUP AND
I WAS THINKING ABOUT THAT IN
TERMS OF THE CHALLENGES AND
FOCUS ON DIGITAL HEALTH
LITERACY, THAT FEELS LIKE
SOMETHING THAT MIGHT BE A REALLY
SWEET SPOT, SURE THERE ARE
OTHERS AS WELL. I WONDER IF
ANYONE CAN TALK ABOUT FOR THE
WORK GROUPS IS THERE A PROCESS
OR IS I'M GUESSING A LITTLE AD
HOC FOR DECIDING IF AND WHEN
TIME TO CONSIDER NEWER DIFFERENT
WORK GROUP.
>> THAT IS AN INTERESTING
QUESTION, I DON'T THINK IT IS
ONE WE ADDRESSED THROUGH THIS
EVALUATION PROCESS AS HOW
WORKING GROUPS COME AND GO NONE
HAVE GONE, WE MAYBE AT A POINT
NOW WHERE PATTY AND STAFF MAY
WANT TO CONSIDER GOING FORWARD
WHAT THE PROPER LINEUP MIGHT BE
THAT IS A GREAT QUESTION. PATTY,
ANYBODY ELSE WANT TO RESPOND TO
THAT?
>> THANK YOU VERY MUCH, NANCY,
AND NEIL. THIS IS VERY
INTERESTING IDEA AND ONE OF THE
THINGS THAT I WANT TO BE CAREFUL
OF IS THAT WE MAKE SURE WE MAKE
GOOD USE OF THE BOARD'S TIME. I
WOULD ENVISION THAT THIS IS A
PERFECT TIME TO BE THINKING
ABOUT THE PROPER STRUCTURE FOR
THIS NEXT FISCAL CALENDAR YEAR
BECAUSE WE HAVE AN OPPORTUNITY
TO REVIEW SOME OF THE
RECOMMENDATIONS FROM THE BOARD
AND I READ TWO THINGS IN THE
REPORT THAT I THINK ARE VERY
IMPORTANT. ONE IS WE MAY WANT TO
RECONSIDER WHAT THE THEMEATIC
FOCUS OF RESEARCH FRONTIERS IS,
AND THE SECOND IS THAT WE MAY
WANT TO THINK ABOUT MOVING THE
STRATEGIC PLANNING EFFORT INTO A
HIATUS FOR A WHILE WHILE WE
ADDRESS SOME OTHER ISSUES SO
APPRECIATE THE TIMING. I ASK THE
BOARD TO LET ME KNOW IF PLANNING
FOR BASICALLY AT LEAST A ONE
YEAR ENGAGEMENT IS A REASONABLE
PLANNING PREMISE, IT SEEMS TO --
WE NEED SOME TIME TO GET BOARD
MEMBERS ENGAGED AND HAVE A
DIALOGUE OF WHAT WE CAN POSSIBLY
ESTABLISH SO I WAS THINKING THAT
WE PROBABLY SHOULD INITIATE NEW
IF WE INITIATE NEW ACTIVITY IT
SHOULD LAST A YEAR. DOES THAT
MAKE SENSE AND SOUND REASONABLE
>> THAT DOES MAKE SENSE. I THINK
THAT ONE THING THAT IS NOT
BROUGHT OUT IN THE EVALUATION
SUMMARY BUT THERE WERE QUITE A
FEW DISCUSSIONS ABOUT WAS HOW TO
ORIENT ESPECIALLY ON COMING --
INCOMING BOARD MEMBERS TO THE
WORKING GROUP STRUCTURE AND WHAT
THE EXPECTATIONS ARE, WHAT THEIR
ROLE IS SUPPOSED TO BE. SO MORE
EMPHASIS ON THAT AND A ONE YEAR
COMMITMENT CERTAINLY WOULD MAKE
SENSE IN TERMS OF SOME
CONTINUITY AND ORIENTATION TO
THE OVERALL FRAMEWORK TOO.
>> WE TRIED COUPLE OF WAYS TO
ORIENT BOARD MEMBERS. EACH HAS
BENEFITED FROM OR SUFFERED FROM
OUR STEPS IN THIS AREA. IN THE
LAST YEAR I SENT INDIVIDUAL
LETTERS TO PEOPLE DESCRIBING THE
BOARD AND THE WORKING GROUPS, I
PREFER FRANKLY TO HAVE
CONVERSATIONS WITH PEOPLE FOR
THAT ORIENTATION BUT RECOGNIZE
HOW BUSY PEOPLE'S SCHEDULES ARE,
SO I THINK WE MAY ALSO CONSIDER
AT THE FALL BOARD MEETING,
MAKING A GENERAL ORIENTATION
STATEMENT ABOUT OUR PLANS FOR
THE YEAR.
>> MAKES SENSE. PART OF THE
COMMENTS THAT I REMEMBER HEARING
ABOUT THIS, HAD TO DO WITH
COMING ON DURING THIS TIME OF
VIRTUAL MEETINGS. AND HOW
CHALLENGING THAT HAS BEEN FOR
PEOPLE WHO DON'T KNOW WHO WE
ARE, WHAT THIS IS ABOUT AND
TRYING TO FIGURE OUT THROUGH
ZOOM SCREEN. KRISTI.
>> MY -- THAT IS EXACTLY WHAT I
COMMENT IS ABOUT. WHEN MANY OF
US HAVE JOINED THE BOARD DURING
COVID AND I THINK THOSE
OPPORTUNITIES TO GET TO KNOW ONE
ANOTHER TO BUILD TRUST, HAVE NOT
BEEN POSSIBLE LIKE THEY
TYPICALLY ARE WHEN HAVING THESE
KINDS OF MEETINGS. I WONDER IN
CONTEXT OF THIS SUMMARY
EVALUATION OF THE WORKING
GROUPS, IF IT ISN'T PERHAPS
WORTH ASKING SOME OF THESE
QUESTIONS COUPLE OF YEARS DOWN
THE ROAD TO CONTINUE TO MONITOR
HOW THE STRUCTURES ARE WORKING,
HOW PEOPLE ARE FEELING, BECAUSE
WORK LOOKS SO DIFFERENT NOW.
JUST HAVING THAT FRONT OF MIND
WORKING WITH IT AND ADJUSTING AS
NEEDED WOULD BE GREAT. I
DEFINITELY FELT AS THOUGH I GOT
A GOOD ORIENTATION TO JOIN THE
BOARDS, I THINK IT IS JUST
GETTING TO KNOW COLLEAGUES AND
FINDING THOSE POINTS OF
CONNECTION AND OPPORTUNITIES TO
WORK TOGETHER AND HAVE
MEANINGFUL DISCUSSIONS THAT
HAVEN'T BEEN AS POSSIBLE SO
LOOKING FORWARD TO SEPTEMBER.
THANK YOU.
>> THANKS, KRISTI. I AGREE,
REMINDS ME ALSO I WANT TO THANK
PATTY FOR INITIATING WORKING
GROUPS AND BRINGING THAT TO THE
BOARD TO PROVIDE AN OPPORTUNITY
FOR A DEEPER MORE MEANINGFUL
ENGAGEMENT. FOR US TO WORK WITH
STAFF AT NLM. ALSO TO BRING OUT
THE PROCESS EVALUATION AT THIS
POINT, IT IS A PARTICULARLY GOOD
TIME TO HAVE DONE THAT. I THINK
IT DOES MAKE SENSE TO
PERIODICALLY IN THE NEXT COUPLE
OF YEARS REVISIT SOME OF THOSE
SAME ISSUES AND SEE WHERE WE ARE
AT. THANKS FOR THAT COMMENT.
ANYTHING ELSE FROM BOARD
REGARDING THIS? IF NOT WE HAVE
GAIN AD FEW MINUTES ON OUR
SCHEDULE. ONE THING I WANT TO
MENTION AT THIS POINT IS THAT AT
11:30 WE WILL BE SWITCHING TO
SPEAKING OF WHICH, OUR WORKING
GROUP BREAK OUTS.
>>WE CAN PROCEED WITH THE
WORKING GROUP REPORT OUTS IN THE
ORDER OF STRATEGIC PLANNING,
FRONTIERS AND PUBLIC SERVICES
AND COLLECTIONS BUT WE CAN GO I
THINK IN ANOTHER ORDER IF WE'RE
READY TO DO THAT.
I SEE PEOPLE POPPING BACK IN
NOW.
WE'RE IN GOOD SHAPE.
>> WE HAD SOME CORRESPONDENCE IN
FRENCH TODAY BUT THANKFULLY OWE
-- OLIVIER IS HERE.
>> HE SAYS YOURS IS GOOD SO THAT
MEETS EXPECTATIONS.
>> I'LL TAKE THAT ANY DAY.
>> NOW WE'RE DISTRACT BEING
EVERYONE.
I MISS ALL OF YOU.
I CAN'T WAIT TO BE IN THE SAME
ROOM AGAIN.
>> DOUGH WITH HAVE SOMEBODY FROM
THE STRATEGIC PLAN GROUP TO
REPORT OUT?
>> THAT'S ME.
JOE.
I AM LOOK AT FIVE PAGES OF STUFF
AND I CAN READ IT BUT I DON'T
KNOW HOW TO SUMMARIZE IT.
>> THAT'S ALWAYS THE CHALLENGE
WITH REPORT OUTS.
>> MAYBE, JIM, JUST USE THE
SLIDE.
>> WHY DON'T I DO THAT.
I'LL DO THIS AND THAT.
SO WE HAD A PRESENTATION ON
DIVERSITY, EQUITY AND INCLUSION
AND ACCESSIBILITY AS A KEY
STRATEGIC DIRECTION.
AND A KEY ELEMENT ENSURING
EQUITABLE AND JUST HEALTH
OUTCOMES AND CONTINUE TO
ESTABLISH TRUST WITHIN
STAKEHOLDERS.
AND ON THIS EXISTING ADVANCING
DEF
>> DEIA AND I LOST MY PAGE THAT
HAD THE ACRONYMS ON IT.
>> UNITE ADDRESSES THE CRITICAL
ASPECTS OF ADVANCING RACIAL
EQUITY AND REDUCING STRUCTURAL
RACISM AT NIH.
THE STRATEGIES TO UNDERSTAND I'M
NOT GOING TO GET THEM EXACTLY
RIGHT OTHER.
I IS FOR THE INTRAMURAL PROGRAM
AND THE E FOR THE EXTRAMURAL
PROGRAM AND THE T IS
TRANSPARENCY AND ACCOUNTABILITY,
THANK YOU, MIRIAM AND THE N IS
WAITING FOR NEXT MESSAGE FROM
MIRIAM TO HELP.
YOU CAN COME OFF MUTE ADVANCING
NEW RESEARCH ON HEALTH
DISPARITIES.
THANK YOU, VERY MUCH.
THIS IS DESIGNED TO FOCUS ON OUR
WORKFORCE AS WELL AS FOCUS ON
THE NATURE OF SCIENCE WE DO NOT
JUST THE SCIENCE OF HEALTH
DISPARITIES AND HEALTH EQUITIES
BUT HOW OUR SCIENTIFIC PROGRAM
OVERALL CAN BE BETTER ADDRESSING
THE DIFFERENCES ACROSS THE
POPULATIONS WE WORK WITH.
THANKS.
>> THANK YOU.
>> ETHICAL IMPLICATIONS AND
PUBLIC EDUCATION TO ACCESS TO
INFORMATION AND INTERROGATING
OUR OWN PRODUCTS TO PROMOTE
EQUITY AND DIVERSIFYING THE
WORKFORCE AND TELLING MORE
NUANCED STORIES OF SCIENCE AND
CONTINUING TO ELEVATE AND
ADVANCE THE DEIA AS KEY NLM
STRATEGIC DIRECTION.
WE DISCUSSED VARIOUS POINTS AND
DISCUSSED PRIORITIZATION AND
SOME THINGS THAT PATTI'S
INTERESTING IN UNDERSTANDING HOW
WE PRIORITIZE AS WE MENTION
IMPROVING OUR INCREASING
DIVERSITY OF THE NLM WORKFORCE
AND INCREASING THE DIVERSITY OF
WORKFORCE AND LOOKING AT THE
ETHICS OF A.I. AND ITS SUBTLE
ABILITY TO INCLUDE DISPARITIES
IN DECISION MAKING.
LET ME TAKE A QUICK LOOK AT THE
NOTES.
THEY SAID THERE'S FOUR PAGES OF
NOTES HERE.
I'M SORRY.
IT'S IMPOSSIBLE FOR KNOW
EXTRACT.
>> THIS IS THE TIME WHEN YOU
TURN TO YOUR COLLEAGUES AND SAY,
PATTI, WHAT DO YOU REMEMBER FROM
THE CONVERSATION.
>> LET ME ASK JOE --
>> THAT'S EVEN BETTER.
HAS JOE RETURNED YET?
>> I ASKED FOR COLLEAGUES TO ASK
TO PRIORITIZE TOOLS TO BASICALLY
IMPROVE THE SUBSTRATE WE
GENERATE RESEARCH FROM,
TARGETING OUR INTERNAL NLM
WORKFORCE OR BROADENING THE
DIVERSITY OF OUR EXTRAMURAL
COMMUNITY AND OF COURSE BEING
APPROPRIATE ADVISORIES THEY SAID
DO ALL THREE.
THEY TALKED ABOUT WHAT STEPS
NEED TO HAPPEN IN EACH ONE.
ETHICAL A.I. JOE RAISED THE
ISSUE ETHICS SAY CHALLENGE IN
ITSELF AND UNDERSTANDING WHAT
ETHICAL A.I. MEANS IN THE
CONTEXT OF A SYSTEM THAT MAY IN
ITSELF MAY NOT BE OPERATING AT
THE HIGHEST ETHICAL PRINCIPLES
IS A CHALLENGE AND UNDERSTAND
WHAT TO DO WITH THE INFORMATION
AND ETHICS SAY SYSTEM OF
REASONING NOT NECESSARILY AN
ADJUDICATION AND THE SECOND WITH
OUR INTERNAL WORKFORCE WE SPOKE
SIMPLY LOOKING AT
REPRESENTATIVENESS AND OUR
COUNTS OF INDIVIDUALS THAT
IDENTIFY WITH VARIOUS RACIAL AND
ETHNIC GROUPS MAY NOT HAPPEN
FAST ENOUGH TO BRING THE
DIVERSITY WORKFORCE IN PARITY
WITH SOCIETY AND YOU CAN'T SEE
WHAT YOU CAN'T BE SO HAVING
LEADERSHIP AND HAVING
DEVELOPMENT ACROSS THE CAREER
TRAJECTORY OF INDIVIDUALS WHO
LOOK LIKE OTHERS IS ONE SURE WAY
OF DIVERSIFYING OUR WORKFORCE
AND WE SPOKE ABOUT THE
EXTRAMURAL COMMUNITY AND RIM
RAISED THE ISSUE HOW DO WE TAP
INTO THE K-12 TO GET THEIR
INTEREST AND WE'LL REFER MORE TO
DIANE AND THE NETWORK TO GET A
BETTER UNDERSTANDING WHAT KIND
OF PARTICIPATION AND MATERIALS
WE THAT COULD BE USED BY OUR
STAKE HOLDERS, BY OUR TRAINING
GRANT DIRECTORS OR BY OUR FUNDED
RESEARCHERS TO BE ABLE TO GO OUT
INTO HIGH SCHOOLS AND GRAMMAR
SCHOOLS AND TALK ABOUT MEDICAL
INFORMATICS AND DATA SCIENCE AND
LIBRARY SCIENCE AS A RESEARCH
CAREER AS A SATISFYING PROGRAM.
SO WE LEFT THE MEETING WITH MORE
WORK TO DO THAN INTO IT AND IT
WAS A FRUITFUL DISCUSSION, THANK
YOU VERY MUCH.
>> THANKS, PATTI.
IS JOE BACK ON?
>> ANY OTHER QUESTIONS OR
COMMENTS?
NO COMMENT FROM JOE ON THAT AND
WE CAN CIRCLE BACK TO ANY OF
THIS AFTER OTHER REPORTS.
RESEARCH FRONTIERS.
WHO IS REPORTING OUT FROM THAT?
>> I THINK I CAN DO THAT.
WE HAD AN INTERESTING MEETING A
TEST OF POTENTIAL USE OF
RESEARCH FRONTIERS GROUP AND
THAT WAS WE HAD FOUR
PRESENTATIONS FROM INTRAMURAL
PVESTIGATORS.
VERY SNTATION
OBVIOUSLY TO GET FOUR IN AND GET
Q&A IN.
BUT REALLY FOUR GREAT
PRESENTATIONS.
AND SO JUST TO SUMMARIZE THAT
QUICKLY FOR YOU ALL BECAUSE I
THINK THEN WE'LL GET TO WHY DO
THAT AND IS IT HELPFUL TO THE
BOARD MEMBERS AND TO NLM WE HAD
A DISCUSSION ABOUT THAT AT THE
END.
SO DR. JANG PRESENTED ON HER
WORK IN THE MICROBIOME WHICH WAS
REALLY INTERESTED AND INCREDIBLY
COMPLEX STUFF ALL KINDS OF
BACTERIA DOING DIFFERENT THINGS
EXISTING IN DIFFERENT
CONDITIONS.
WHETHER THE CONDITIONS ARE
CAUSAL OR NOT IS ANOTHER ISSUE.
TRYING TO MAKE SENSE OF THAT AND
WHAT FOR EXAMPLE SOME BACTERIA
PRODUCE HISTAMINE AND IS IT
IMPORTANT TO PRODUCING DISEASES.
FOR EXAMPLE, IN ASTHMATICS THERE
ARE MORE HISTAMINE PRODUCING
BACTERIA BUT IS THAT -- HOW
RELEVANT IS THAT AND HOW CAN ONE
QUICKLY REVIEW DATA THE WHOLE
MESS OF DATA TO MAKE INCLUSIONS
ABOUT HISTAMINE VERSUS BILIRUBIN
VERSUS OTHER CHANGES THAT ARE
MADE.
THE SECOND PRESENTATION WAS
DR. OTARANKO AND HE'S
INTERESTING IN THE 98% OF THE
GENOME THAN NON-CODING AND 95%
OF THE DISEASE CAUSING MUTATIONS
EXIST.
AND HOW DO YOU UNDERSTAND THE
WHOLE REGULATORY PART OF THE
GENOME.
THE VAST MAJORITY OF THE GENOME
AND CAN YOU PREDICT WHAT KINDS
OF CHANGES MUTATIONS IN THAT
SPACE MAY LEAD TO IMPORTANT
CHANGES IN DISEASE IN GENE
REGULATION THAT THEN LEADS TO
DISEASE.
SO WE'VE BEEN TRYING TO
INFORMATION WHAT KINDS OF
CHANGES IN NON-CODING PRODUCE
IMPORTANT DISEASE VARIANTS.
SO FASCINATING WORK TO SERVE AS
AN IMPORTANT TOOL AND SCREENING
AND THE NEXT PRESENTATION WAS
DR. PORTER AND SHE'S ALSO DOING
REALLY INTERESTING WORK ON THE
FACT THAT WE KNOW THERE ARE 230
MILLION PROTEIN SEQUENCES OUT
THERE BUT ONLY 60,000 PROTEINS
HAVE THE STRUCTURE NAMED.
HUGE DIFFERENCE BETWEEN
SEQUENCING AND ACTUALLY KNOWING
HOW TO STRUCTURE AND SHE'S
PARTICULARLY INTERESTED IN HOW
DO WE PREDICT THOSE STRUCTURES
AND IN PARTICULAR FOR PROTEINS
THAT FLIP WE FOLD WHICH IS
REALLY IMPORTANT BECAUSE IN SUM
THERE'S A CONFIGURATION THAT'S
NON-DISEASE CAUSING AND IN
ANOTHER THAT IS DISEASE CAUSING.
UNDERSTANDING WHICH OF THOSE
PROTEINS HAVE THAT PROPENSITY
AND WHAT THE TWO STRUCTURES MAY
BE.
AGAIN, DEVELOPING METHODS TO TRY
TO PREDICT WHEN THEY'RE TWO
STRUCTURES AND TRY TO BEAT THE
OTHER EXISTING COOLS.
REALLY COOL WORK.
THE FINAL PRESENTATION WAS
DR. LU WHO IS DOING ALSO SOME
COOL WORK ON RARE DISEASES.
SO YES, THEY'RE RARE AND ONE IN
100,000 OR 10,000 OR WHATEVER
TOGETHER THERE'S ABOUT 350
MILLION PEOPLE IN THE WORLD
SUFFERING FROM A RARE DISEASE SO
COLLECTIVELY NOT RARE AND IT'S A
MESS IN TERMS OF PHENOTYPING.
IT'S A MESS IN TERMS OF
GENOTYPING AND MIXING THOSE
TOGETHER.
SO THEY BASICALLY USE A.I.
NATURAL LANGUAGE PROCESSING TO
TRY TO CLE THAT UP SO FOR
PHENOTYPING, COME UP WITH COMMON
NOMENCLATURE FOR PHENOTYPES AND
THEN PULL THOSE OUT OF THE
PUBLISHED LITERATURE TO
SYSTEMATIZE THOSE
CHARACTERISTICS COGNITIVE
IMPAIRMENT WOULD BE AN EXAMPLE
OR ALL THOSE PIECES AND CREATE
THE PHENOTYPE FROM REPRODUCE IT
FROM NATURAL LANGUAGE PROCESSING
AND ON THE GENE VARIANT SIDE
PEOPLE ARE NOT USING THE
STANDARD TERMINOLOGY FOR
IDENTIFYING GENE VARIANTS.
USING PNAI TO SAY OKAY, THIS
GENE VARIANT IS THE SAME AS THAT
ONE AND THEY WILL DESCRIBE IT IN
DIFFERENT WAYS AND BE MAPPING
THAT IS ANOTHER IMPORTANT TOOL
SO THEY CREATED A TOOL TO DO
THAT CALLED LITVAR AGAIN FROM
THE LITERATURE TO TRY TO MAKE
SENSE OF THAT AND NOW THEY'RE
TRYING TO MAP THOSE THINGS
TOGETHER.
ARE THERE COMMON GENE VARIANTS
THAT ARE ASSOCIATED WITH
SYMPTOMS THAT HAVEN'T REALLY
BEEN LINKED AND THAT IT SOUNDS
LIKE YOU'RE JUST GETTING IN THAT
AREA.
DIFFERENT KIND OF WORK THAN THE
OTHER WORK BUT REALLY COOL.
OVERALL THE COMMITTEE WAS
IMPRESSED AND DID A GREAT JOB OF
MAKING THIS ACCESSIBLE AND NONE
OF US HAVE THE EXPERTISE IN ANY
OF THESE AREAS TO US AND
PERSONALLY I WAS LEFT WITH BEING
ENERGIZED BY THE WORK BEING DONE
INTRAMURALLY AND IMPRESSED IN
ITS ALIGNMENT TOWARDS PUSHING
DOING THINGS FOR OTHER
INVESTIGATORS AND NOT JUST FOCUS
BUT CREATE SOMETHING HELPING TO
BUILD A PLATFORM FROM WHICH
OTHERS CAN WORK AND TAKE
ADVANTAGE THAT YOUR INTRAMURALLY
CONNECTED TO NIH AND OTHER
PROGRAMS TO WORK ON PLATFORM
ISSUES.
ALL FOUR OF THESE DID THAT AND I
WAS IMPRESSED WITH THE
FASCINATING WORK THAT'S GETTING
DONE.
THE RELEVANCE OF IT.
SO THIS IS FOUR RANDOM PROGRAMS
SELECTED FROM A LARGER NUMBER OF
INTRAMURAL INVESTIGATORS.
IS IT REALISTIC TO INVESTIGATE
ALL OF THEM AND WHAT UTILITY
DOES THAT PRODUCE FOR NLM.
WE HAD SOUND CONVERSATION ABOUT
THAT.
I WOULD SAY THAT I DO THINK IT'S
VALUABLE AND I THINK IT COULD
HAVE INFORMED SOME OF THE PRIOR
CONVERSATIONS THIS COMMITTEE HAS
HAD ABOUT THINGS LIKE WHAT
SHOULD THE INTRAMURAL PROGRAM
FOCUS ON?
WELL, IT WOULD HAVE MADE MORE
SENSE RATHER THAN TO READ
SNIPPETS AND TWO SENTENCES ABOUT
THIS INVESTIGATOR IS DOING THIS
KIND OF WORK TO HAVE A DEEPER
UNDERSTANDING OF WHAT'S ACTUALLY
ON INTRAMURALLY AND WOULD HAVE
ACTUALLY BEEN HELPFUL IN THE
CONVERSATIONS TO MAKE OUR INPUT
MORE USEFUL WHETHER THAT'S WORTH
LARGE INVESTMENT OF TIME
REQUIRED TO GET A GOOD REAL
UNDERSTANDING OF IT I THINK IS
ANOTHER QUESTION.
SO WHERE WE LEFT IT WAS THE
COMMITTEE WILL THINK ABOUT AND
THE NLM FOLKS WILL THINK OF WHAT
IS THE UTILITY OF THIS AND HOW
CAN WE INTEGRATE SOME ASPECT OF
IT INTO WHAT WE DO.
IS THERE BROADER UTILITY IN
HAVING A DEEPER UNDERSTANDING
FROM SOME SUBGROUP OF THE
REGENTS.
THAT'S MY QUICK SUMMARY.
I DON'T THE IF OTHERS ON THE
COMMITTEE WANT TO SAY ANYTHING?
NANCY HAD GREAT COMMENTS WE HAD
AS WELL.
>> I THINK YOU CAPTURED IT,
CLAY.
THANK YOU FOR SUMMARIZING SO
WELL BOTH THE CONTENT WHICH WAS
REALLY GREAT AS WELL AS SOME OF
THE DISCUSSION SUBSEQUENTLY.
THANK YOU.
>> THERE'S BEEN A GREAT
DISCUSSION.
MOVING ON TO PUBLIC SERVICES.
>> THIS IS THE PUBLIC SERVICE
WORKING GROUP.
GOOD MORNING, EVERYBODY AND GOOD
AFTERNOON FOR THOSE ON THE EAST
COAST.
THIS IS ESSENTIALLY THE TEAM
THAT IS STILL STICKING IN THERE
WITH THIS MODERNIZATION.
AND THERE'S A WHOLE
MODERNIZATION EFFORT AND MANY
HAVE SEEING LITTLE BITS AND
PIECES OF WHAT WE'VE DONE.
OUR FIRST YEAR WE FOCUSSED A LOT
OF ON ENGAGEMENT THEN IN
DEVELOPMENT AND NOW WE'RE INTO
THE IMPLEMENTATION PHASE.
SO WE'RE FINALLY THERE AND
THERE'S BEEN A LOT OF MOVING
PIECES AND I'M TO TRY TO TELL
YOU JUST A FEW LITTLE HIGHLIGHTS
OF OUR DISCUSSION TODAY AS WELL
AS A PREVIOUS MEETING.
SO WE MET AS A TEAM ON APRIL 29
WE HAD GREAT LIGHTNING
PRESENTATIONS WHICH WERE
FANTASTIC AND WE HAD AN
INCREDIBLE EXERCISE AND THIS
COMMITTEE IS WAY TOO MUCH FUN
AND NAVIGATING ABOUT THE
USABILITY OF THE SITE AND FOLKS
WHO COME TO OUR SITE THINK
BECAUSE THE RECORD IS ON OUR
SITE WE'RE ENDORSING IT AND
THAT'S NOT THE CASE.
WE'RE A LIBRARY AND WE HAVE TO
REMIND FOLKS WE HAVE THE
HOLDINGS BUT DON'T ENDORSE THE
RECORD IN THERE.
THAT'S BEEN A CRITICAL PIECE.
WE'VE HAD A SERIES OF BETA
RELEASES ALREADY.
WE'RE WORKING ON TRYING TO SEE
HOW THIS LOOKS NOT JUST ON A
DESK TOP BUT ON A MOBILE DEVICE
AS WELL AS LAPTOPS THAT PEOPLE
MAY BE USING.
WORKING ON THE ARCHITECTURE AND
ENGINEERING PARTS OF THE WEBSITE
IN ADDITION TO CONTENT.
REALLY THIS IS MORE OF THE
DIGITAL ARCHITECTURE.
THIS IS A SUMMARY OF DATA
RELEASES AND THE PUBLIC SITE
VIEW WHICH YOU'LL ALSO GET THE
OPPORTUNITY TO SEE.
THE NAVIGATION AND USABILITY.
ONE INTERESTING THING IS THAT
WE'RE REALLY CHALLENGED BECAUSE
WE'RE AT AN INTERSECTION OF BOTH
USER NEEDS, PATIENT NEEDS AND
RESEARCHER NEEDS.
WE HAVE ABOUT I THINK OVER
60,000 USERS THIS IS NOT A SMALL
SITE THAT IS NOT USED ALL THE
TIME.
THIS IS CRITICAL FOR THOSE USING
THE SITE.
THERE'S A NAVIGATION OF THE
TECHNICAL CONTENT AND PLAIN
LANGUAGE.
HOW DO WE PROVIDE INFORMATION
THAT IS PROPED IN --
APPROPRIATE FOR THE LITERACY OF
THE AUDIENCES AND DISPLAY AND
ADD IN TO THE MIX OUR LEGAL
ASPECTS AS WELL THAT NEED TO BE
ACCOUNTED FOR AS WE LOOKS AT THE
THINGS AND CHANGES WE'RE DOING
TO THE WEBSITE.
WE WE HOLD THE RECORDS.
WE DO NOT ENDORSE NECESSARILY
THE RECORDS.
THIS HAS LED AND SOMETHING OUR
COMMITTEE HAS BEEN DISCUSSING
NOW FOR A FEW YEARS AND SO WE'VE
DONE A FEW TESTING AND NOW WE'RE
AT A POINT WHERE WE'RE
DEVELOPING THE DISCLAIMER
LANGUAGE AND MADE TREMENDOUS
PROGRESS IN MATERIALS OF DOING
THAT.
REALLY IMPORTANT IS A LISTING OF
A STUDY AGAIN DOES NOT MEAN IT
HAS BEEN EVALUATED BY THE
U.S. FEDERAL GOVERNMENT SO
THAT'S WHY WE ARE VERY CAREFUL
ABOUT WHAT THIS LANGUAGE MAY
LOOK LIKE.
SO WE'VE GONE THROUGH FIVE
DIFFERENT VERSIONS OF THIS NOW
AND OUR COMMITTEE GOT TO CHOOED
TODAY AS WELL AS ON APRIL 29
WHAT WERE SOME OF OUR FAVORITES.
I'M NOT GOING TO WALK YOU
THROUGH SOME OF THE THINGS WE'VE
SELECTED.
SO THESE ARE SOME OF THE
COMMENTS WHEN PEOPLE LOOK AT OUR
DISCLAIMER THAT IT WAS
OFF-PUTTING, DISTRACTING, WANT
TO GET IT OUT OF THE WAY.
THIS HAS BEEN THE FEEDBACK WE'VE
BEEN RECEIVING SOME PEOPLE
COULDN'T EVEN FIND IT.
THERE'S BEEN A DEVELOPMENT IN
THIS WHOLE PROCESS.
SO THE WORKING GROUP MEMBERS
WERE PRESENTED WITH FIVE OPTIONS
AND THE OPTION THAT WAS
PREFERRED WAS THIS POP-UP
OPTION.
IT IS AN OPTION WHERE A PERSON
THAT IS ON THE SITE HAS TO
ACKNOWLEDGE THE MESSAGE AND THEN
THE MESSAGE DISAPPEARS.
SO WE'RE LISTENING TO WHAT THE
USERS ARE SAYING AS WELL TO MAKE
SURE THE DISCLAIMER REALLY IS
PRESENTED IN A MODE CONVENIENT
FOR THE USERS.
A LOT OF WORK WENT INTO THIS AND
THESE ARE OTHER OPTIONS AND
DESIGN IDEAS WE HAD AND EVEN
TODAY WE'RE VOTING ON THIS AND
EVERYONE AGREED WITH OPTION
THREE WHICH IS THE ONE THAT
REALLY PRESENTED AS A POP UP
WITH A ONE-TIME DISCLAIMER YOU
THEN CHECK OFF AND HAVE TO
ACTUALLY SORT OF ACKNOWLEDGE YOU
HAVE READ THIS AND NRSZ
UNDERSTAND IT AND THESE HAD
BENEFITS AND PROS AND CONS AND
THE OTHER VERSION KEEPS RISING
TO THE TOP AS THE MOST POPULAR.
THIS COOL TESTING ACTIVITY THE
TEAM DID WITH US IS THE POP UP
AND THE SMALLER DISCLAIMER BELOW
THE SEARCH AREA A LARGER AREA
WHERE OTHER POTENTIAL OPTIONS WE
COULD REALLY USE BUT WE WENT
WITH A POP-UP VERSION THAT SEEMS
TO BE MOST PREFERRED BY
EVERYONE.
IS THE OTHER IS THE PLAIN
LANGUAGE ISSUE IN THE SITE.
WE TRIED TO FOCUS ON THE IN
TINDED AUDIENCES AND THE PURPOSE
OF WHAT IS BEING COMMUNITIES TO
EACH ONE OF THOSE AND WE HAVE
JARGON THAT USES THE ACTIVE
VOICE.
PAIRING NUMBERS WITH WORDS TO
GIVE CONTEXT AND AID AND
INTERPRETATION AND LOOKING AT
STRUCTURE CONTENT TO CLEARLY
CONVEY WHAT THE READER NEEDS TO
LEARN ABOUT THAT PARTICULAR
RECORD OR WHERE THEY'RE AT AT
THE WEBSITE.
THEN TESTING AND MAKING SURE
IT'S VERY VIEWED BY THE THIRD
PARTY FOR EXAMPLE A MEMBER OF
THE INTENDED AUDIENCE.
THESE HAVE BEEN IMPORTANT TO
ENSURE WE HAVE PLAIN LANGUAGE
ALL CAN UNDERSTAND AND SOME
TAKES ULT BEYOND WHAT THE
RECORDS SAY THEMSELVES AND
THERE'S BEEN A LOT OF DISCUSSION
ABOUT WHO ENTERS THE RECORD FOR
EXAMPLE AND SOMETIMES THAT
INDIVIDUAL MAY BE MORE OF A
CLERICAL PERSON THAT DOESN'T
UNDERSTAND ALL THE SCIENTIFIC
PARTS OF IT AND MAY NOT BE ABLE
TO CHANGE THAT RECORD INTO A
PLAIN LANGUAGE.
WE DON'T DO ANY OF THE ACTUAL
RECORD OR CHANGING ANYTHING BUT
AS MUCH AS WE CAN WE CAN PROVIDE
IN PLAIN LANGUAGE IS ONE OF THE
INTENT HERE.
THAT'S BEEN A LITTLE BIT OF OUR
SUMMARY AND I'D LIKE TO INVITE
ANY OF OUR COLLEAGUES THAT WOULD
LIKE IT ADD ANYTHING ELSE OR
ANNA FINE WHO HAS BEEN HELPING
US LEAD THIS EFFORT WITHIN NLM.
>> GREAT TO SEE THIS COMING
TOWARDS THE END OF THE
RENOVATION.
ONE QUESTION I HAD IN TALKING
WITH OTHERS THAT USE SITES LIKE
THIS TO UNDERSTAND WHAT CLINICAL
TRIALS EXIST IS WHICH ONES ARE
OPEN FOR ENROLLMENT.
IS THAT PLANNED TO BE A
COMPONENT OF THIS AND I THINK
ONE OF THE CHALLENGES I SEE IN
THE CANCER SPACE IS THAT CAN
CHANGE RAPIDLY AND CAN GO BACK
AND FORTH AND NOT JUST TO A
SINGLE POINT IN TIME.
I'M WONDERING IF THAT'S THOUGHTS
THAT PIECE OR IF THAT'S TOO MUCH
OF A BEAST TO TACKLE.
>> THE RESPONSIBLE PARTIES ARE
RESPONSIBLE FOR KEEPING THEIR
RECORDS UP TO DATE AND CERTAIN
TIME LINES THEY HAVE COMMITMENTS
TO AND WHEN THERE'S CHANGING TO
THEIR TRIAL AND OBLIGATIONS
THERE.
I CAN SEARCH TRIALS OPEN FOR
ENROLLMENT AND MAY NOT BE AND
IDEALLY THEY'RE UP TO DATE AS WE
HOPE THEY ARE BUT I'M SURE NOT
ALL ARE FOLLOWING EVERY THING
THEY SHOULD BE DOING.
THERE'S WAY TO SEARCH THAT AND
VERY PRESENT THAT IN THE BETA
MAKING SURE WHO YOU CONTACT AND
MAKING SOME OF THAT INFORMATION
MORE PREVALENT SO THAT WAY WHEN
PEOPLE ARE SEARCH FORG TRIALS
THEY KNOW HOW TO CONTACT FOR
THAT TRIAL.
>> ANY OTHER QUESTIONS FOR
LOURDES AND THE CLINICAL TRIALS
TEAM?
ANY COMMENTS?
>> NEAL, THIS IS PATTI.
I HAVE A QUESTION FOR MY OWN
PEOPLE.
ANNA CAN YOU TALK ABOUT HOW
WE'RE INTERACTING ABOUT THIS
BECAUSE THIS IS THE KIND OF
THING I KNOW GOES INTO OUR
ANNUAL REPORT BUT HAVE WE BEEN
KEEPING OSP UPDATED ON THE
ACTIVITIES OR OER OR DO YOU HAVE
FUTURE PLANS FOR THAT?
ABSOLUTELY, PATTI.
WE DO HAVE THE HEAD OF OSP OUR
WORKING GROUP MEMBER AND SHE WAS
ACTUALLY PRESENT AT THE LAST
MEETING.
YOU MAY KNOW HER AND I WE DO
MEET REGULARLY WITH POLICY.
WE DID GIVE THEM AN UPDATE ON
THE RESULTS WE RECEIVE FROM THE
BOARD OF REGENTS LAST WEEK AND
LETTING THEM KNOW IT'S STILL
PRELIMINARY BECAUSE WE'RE DOING
ADDITIONAL USER TESTING AND WE
HAVE OTHER MEETINGS ACROSS
GOVERNMENT AND FDA AND KEEPING
THEM ABREAST AND I DID PRESENT
RECENTLY WITH OUR COLLEAGUES AT
FDA TO OTHER ORGANIZATIONS ABOUT
OUR EFFORTS.
THEY'RE SOMETIMES GETTING TIRED
OF SEEING OUR FLAGS.
>> I WANTED TO BRINGS THIS
ATTENTION TO THE BOARD OF
REGENTS.
ONE OF THE CRITICAL PIECES THE
WORKING GROUPS DO FOR US IS
COMMUNITY ABOUT THE PUBLIC INPUT
OF OUR SERVICES COLLECT
CLINICALTRIALS.gov IS PAID BY
NIH FUNDING AND OUR
MODERNIZATION.
EACH TIME WE GET GUIDANCE IT
PROVIDES ANOTHER BRICK TO PUT IN
THE PATHWAY OF EXPLANATION AND
OPENNESS WE'RE TRYING TO
DEMONSTRATE AT THE NIH.
THANK YOU.
>> BACK TO YOU, NEAL.
>> THANK YOU, LOURDES.
GREAT REPORT AND WORK.
WE'RE UP NEXT WITH COLLECTIONS
AND HEIDI OR KRISTI TO PRESENT
THAT.
IF YOU'RE READY.
>> I AM, THANK YOU.
I TURNED MY CAMERA OFF BECAUSE I
JUST RECEIVED A CONNECTION
WARNING SO OF COURSE BUT THANK
YOU FOR BEARING WITH ME.
OUR COLLECTIONS WORKING GROUP
DISCUSSION WAS ENTHUSIASTIC AND
INTERESTING AND COVERED THREE
TOPICS.
WE COVERED THE COMPARATIVE
GENOMICS WORKING GROUP.
WE ALSO TALKED ABOUT A
DISCLAIMER MESSAGE AND THE
HISTORY OF MEDICINE YOUTUBE
CONTENT AND CONTINUED OUR
DISCUSSION OF DATA SETS AS
COLLECTIONS WHICH IS ALWAYS AN
INTERESTING OPPORTUNITY TO THINK
ABOUT WHAT DOES A COLLECTION AND
MANAGEMENT OF THAT COLLECTION
LOOK LIKE IN TODAY'S AGE.
SO JUST TO DO A QUICK UPDATE ON
THE COMPARATIVE GENE IOMICS WORG
GROUP AND THE 2021 AND AND
REMEMBER HOW THEY CARRY OUT THE
MISSION OF ENGAGEMENT AND
OUTREACH AND THERE'S DISCUSSION
ABOUT THE WORK THAT'S HAPPENING
AT NCBI AND THE CONTEXT OF
PRODUCING MATERIALS AND ALSO HOW
THE MESSAGING CAN BE SUPPORTED
TO BE ABLE TO DO DIRECT
ENGAGEMENT WITH SPECIFIC
COMMUNITIES THERE WAS AN UPDATE
FROM THE CGR STEERING COMMITTEE
AT NIH AND FINALLY WE HAD AN
INTERACTIVE AND DIVERSE
CONVERSATION ABOUT DIFFERENT
COMPONENTS OF WHAT A SUCCESSFUL
CGR END STATE WILL LOOK LIKE.
THE DISCUSSION WAS REALLY WIDE
RANGING AND WAS ALSO REALLY
POSITIVE AND I THINK EMPOWERING
FOR ALL OF US AS WE'RE THINKING
ABOUT HOW WE CARRY OUT OUR
MISSION IN SUPPORT OF THE
COMPARATIVE GENOMICS WORKING
GROUP.
JUST TO SPEND A COUPLE MOMENTS
TALKING ABOUT THOSE INTERVIEWS
OF THE WORKING GROUP MEMBERS.
THERE WERE A NUMBER OF IMPORTANT
TAKEAWAYS FROM THE ONE-ON-ONE
DISCUSSIONS.
I THINK MOST POSITIVIVEELY AND
EXCITED TO SEE IS MEMBERS ARE
WILLING AND READY AND
ENTHUSIASTIC TO BE MESSENGERS
WITHIN THEIR COMMUNITIES.
THEY FEEL THERE'S AN OPPORTUNITY
TO ORIENT THE WORKING GROUP
MEMBERS ON WHAT THAT PLATFORM
IS.
WHAT IS THIS REALLY TERRIFIC
INITIATIVES IN THE CGR AND WHAT
ARE THE GOALS AND WHAT'S IT
TRYING TO ACCOMPLISH AND HOW DO
WE COMMUNICATE THAT WORKING WITH
OUR DIFFERENT COMMUNITIES AND
THE IDEA OF STAKEHOLDERS AND
STAKEHOLDER ENGAGEMENT AS A
PARTICULARLY IMPORTANT COMPONENT
AND IDENTIFYING THE SPECIFIC
STAKEHOLDER GROUPS AND HOW WE
ENGAGE WITH THEM WAS A CRITICAL
PART OF THE CONVERSATION.
AS FAR AS THE TALKING POINTS
DEVELOPED AS WE THINK ABOUT THE
OUTREACH STRATEGY AND THE
OPPORTUNITY FOR GATHERING
FEEDBACK IS HOW WE'RE EFFICIENT
IN THE MESSAGE.
HOW DO WE EMPHASIZE THE WHAT
MAKES CGR AN IMPORTANT AND
EXCITING INITIATIVE AND THE
SPECIFIC COMPARATIVE AND
ANALYTIC ACTIVITIES CGR WILL
ENABLE AND HOW DO WE INCORPORATE
THAT IN OUR MESSAGING AND
STRENGTHEN MESSAGES TO GROUPS
AND THIRCHING OF THE DEVELOPERS
OF TOOLS AND EDUCATION COMMUNITY
AND WORKFORCE DEVELOPMENT
INITIATIVE AND WHAT WILL HELP
COMMUNICATE THAT OUT.
FINALLY THE WORKING GROUP
MEETING CONCLUDED WITH AN
INTERACTIVE CONVERSATION AND
EXERCISE WHERE WE ASKED THE
WORKING GROUP MEMBERS TO
CONSIDER DIFFERENT PERSONAS AND
THOSE ARE DIFFERENT ROLES IN
THIS ENVIRONMENT AND HOW THEY
CARRY OUT OR HOW THEY'RE
MOTIVATED TO CONSIDER THE CGR
RESOURCE IN TERMS OF
INCORPORATING IT INTO THEIR WORK
OR SUPPORTING IT IN THE CONTEXT
OF LIBRARIES AND THOSE TYPES OF
DISCUSSIONS TO REALLY UNDERSTAND
WHAT IS BROAD ENVIRONMENT LOOK
LIKE AND HOW DO WE NEED IT IN A
MEANINGFUL WAY AND WE HAD AN
OPPORTUNITY TO TALK ABOUT WHAT
SUCCESS LOOKS LIKE AND
IDENTIFIED A NUMBER OF KEY
METRICS AND OUTCOMES THAT WILL
HELP US AS WE ARE MONITORING OUR
OWN PROGRESS TOWARDS OUR AND
IT'S ALWAYS NICE TO HAVE THOSE
WAYS OF CONSIDERING ARE WE ON
THE RIGHT TRACK AND ARE WE
MAKING A DIFFERENCE.
WE DO HAVE A NUMBER OF UPCOMING
ACTIV
ACTIVITIES THAT ARE COMING IN
THE WEEKS AND MONTHS AND FIRST
I'D LIKE TO HIGHLIGHT WE HAVE
THE WONDERFUL OPPORTUNITY TO
HAVE A BLOG POST IN
DR. BRENNAN'S BLOG AT THE END OF
MAY TO HIGHLIGHT THE WORK OF THE
WORKING GROUP.
WE ALSO ASKED OUR WORKING GROUP
TO THINK ABOUT SUCCESS METRICS
AND TO PROVIDE FEEDBACK ON THAT
AND THEN REALLY GETTING EVERYONE
EXCITED ABOUT THAT OUTREACH AND
ENGAGEMENT ACTIVITIES AND THOSE
ARE QUITE WIDE RANGING.
WE ALSO DISCUSSED DURING THE
COLLECTIONS WORKING GROUP THIS
YOUTUBE DISCLAIMER.
SO THIS WAS A REALLY INTERESTED
CONVERSATION.
SO THERE ALREADY IS A DISCLAIMER
IMAGES IN THE DIGITAL
COLLECTIONS IN THE HISTORY OF
MEDICINE DIVISION THAT HELPS TO
HIGHLIGHT POTENTIAL
SENSITIVITIES THAT VIEWERS MAY
FIND IN TERMS OF CHALLENGING
DISTURBING OR OFFENSIVE CONTENT
AND ADVISING VIEWER DISCRETION
AND VIEWS EXPRESSED IN FILMS AND
VIDEOS HELD IN NLM HISTORICAL
COLLECTIONS DON'T NECESSARILY
REPRESENT THE VIEWS OF NLM, NIH
OR THE FEDERAL GOVERNMENT.
IT GOES ON TO SAY THE NLM MOVING
COLLECTION SPANS MORE THAN 100
YEAR OF EVOLVING MEDICAL AND
PSYCHOLOGICAL PRACTICE AND OUR
BEST NEED FOR HISTORICAL AND
EDUCATIONAL PURPOSES.
THIS CONVERSATION WAS
PARTICULARLY I THOUGHT VERY
INTERESTING AND ENCOURAGED US TO
CHALLENGE OURSELVES IN HOW WE
THINK ABOUT HOW CONTENT IS
PRESENTED IN THE COLLECTION.
WE HAD AN INTERESTING
CONVERSATION ABOUT CLAIMERS IN
GENERAL, HOW TO CONVEY TO PEOPLE
WHY IS THIS HERE AND WHAT IS OUR
ROLE AS A LIBRARY AND ALSO THE
OBLIGATION OR THE ROLES OF THE
LIBRARY IN PRODUCING CONTENT
WARNINGS AND ASPECTS SUCH AS
CONTEXT OF ALL OF THOSE
MATERIALS.
WE TALKED ABOUT DATA SETS AS
COLLECTS.
WE THINK ABOUT THE COLLECTION OF
THE LIBRARY AND THERE'S VIRTUAL
AND PHYSICAL ASPECTS BUT WE ARE
AWARE OF THE ROLE DATA IS
PLAYING IN OUR COLLECTION AND IT
BEGS US TO CONSIDER CAREFULLY
WHAT STEWARDSHIP COLLECTION
PRACTICES LOOK LIKE IN THE AGE
OF NEW OBJECTS IN THE COLLECTION
AND SO OVER THE LAST SEVERAL
MEETINGS WE'VE HAD A REALLY I
THINK WONDERFUL CONVERSATION
ABOUT NATIONAL LIBRARY OF
MEDICINE PRODUCTS IN THE CONTEXT
OF A COLLECTION AND WE'VE BEEN
ASKED TO ANSWER THE SPECIFIC
QUESTION OF DO THE COLLECTION
DEVELOP.
GUIDELINES MEET TOMORROW'S NEEDS
WITH REGARD TO NLM DATA SETS AND
DATABASES AND WE TOUCHED ON THAT
THIS TIME AROUND AS WELL.
WE HAVE A LITTLE BIT OF A
SUMMARY JUST AS A REMINDER OF
THE THINGS WE'VE BEEN TALKING
ABOUT IN THE CONTEXT OF THIS
MEETING, OUR WORKING GROUP
MEETINGS IN TERMS OF RETENTION
POLICIES AND PRESERVATION AND WE
ALSO DISCUSSED THE ROLE THAT
PLATFORMS THAT SUPPORT THESE
RESOURCES AND WORK FLOWS PLAY IN
THE CONTEXT OF COLLECTION
PRACTICES.
WE HEARD A LITTLE BIT ABOUT
DIFFERENT GOVERNMENTAL
ACTIVITIES THAT MAY IMPACT WORK
IN THIS AREA INCLUDING EVIDENCE
ACT AND OTHER THINGS THAT CAN
INFLUENCE SOME OF THE COLLECTION
PRACTICES SUCH AS USAGE LEVELS,
COST SIGNIFICANCE AS WELL AS
EVOLVING POLICIES THAT SOME OF
OUR PARTNER ORGANIZATIONS ONE OF
THE INTERESTING CONTEXTS OF THIS
AS WE THINK OF PRESERVATION AND
RETENTION AND OTHER COLLECTION
POLICIES IS HOW THE CONTENT IS
PRESENTED TO USERS OF THE
CONTENT.
SO THERE ARE POLICIES AND PLACE
FORK
FOR STEWARDING THIS AND HOW IS
THIS COMMUNITY COMMUNICATED AND
WE LOOKED AT DIFFERENT RESOURCES
THAT WERE INTERESTING I THINK
AND SHOWED THERE'S THECATED AND
AT DIFFERENT RESOURCES THAT WERE
INTERESTING I THINK AND SHOWED
THERE'S THE ITEM IN THE
COLLECTION AND WORK AROUND IT
AND WE KNOW ABOUT
DISCOVERABILITY BUT EVEN THE
IDEA OF COMMUNICATING POLICIES
AROUND THOSE OBJECTS I THOUGHT
WAS FASCINATING AND INTERESTING
CONVERSATION SO WHEN WE GO DOWN
TO THE REAL QUESTION SO AS WE
WERE ENCOURAGED BY DIANE TO ASK
OURSELVES, DO THE COLLECTION
DEVELOPMENT GUIDELINES MEET
TOMORROW'S NEEDS WITH REGARDS TO
NLM DATA SETS AND DATABASES?
I THINK WE ANSWERED, PAUL SAID
IT'S LIKELY NOT SUFFICIENT AND
IT'S TRUE.
IT'S LIKELY NOT SUFFICIENT
BECAUSE WE DO NEED TO THINK
ABOUT THINGS IN A DIFFERENT
CONTEXT.
THERE'S DYNAMIC MATERIALS AND
WHAT NEEDS TO BE IN PLACE FOR A
LOT OF THIS AND THESE DYNAMIC
OBJECTS AS THEY CHANGE OVER TIME
AND THE POINT WAS MADE A LOT OF
THE POLICY MADE FROM THE
STATUTES THOUGH THEY'RE BEING
UPDATED THEY'RE LIKELY STILL
INSUFFICIENT AND THAT ENCOURAGES
US TO TAKE A DEEPER LOOK AT THIS
AND WE DISCUSSED THE CONTEXT OF
DATA SETS AND ACTIVITY AND
LOOKED AT THIS AND BEGAN THE
DISCUSSION AROUND ETHICAL
CONTEXT.
FOR INSTANCE, SOME OF THE
INDIGENOUS DATA GOVERNANCE WORK
THAT'S BEEN DONE WHICH IS ALWAYS
A NICE PARTNER TO CONSIDER IN
THE CONTEXT WHEN WE'RE THINKING
ABOUT FAIR PRACTICES AS WELL.
I HAVE PROBABLY TAKEN TOO LONG
BUT IT WAS A GREAT CONVERSATION
AND THANKFUL FOR THE WORKING
GROUP.
IT WAS A GREAT WAY TO SPEND AN
HOUR AND I'M SURE I MISSED
IMPORTANT ASPECTS OF THE
CONVERSATION SO I ENCOURAGE AND
INVITE OTHER WORKING GROUP
MEMBERS TO ADD ANYTHING I MIGHT
HAVE MISSED.
>> THANK YOU, KRISTI.
I THINK YOU COVERED IT WELL.
WERE THERE COMMENTS FROM OTHER
MEMBERS OF THE GROUP?
BEING A CHARTER MEMBER OF THE
COLLECTIONS GROUP I HAVE TO SAY
I THINK THESE FACTORS THAT ARE
THE NOTION OF A COLLECTION ITEM.
LISA LANG DURING OUR GROUP DID A
NICE OVERVIEW OF WHAT WE ARE
USED TO THINKING OF AS MORE
STATIC ITEMS AND NOW WE'RE
LOOKING AT DIFFERENT TYPES OF
DATA SETS THAT ARE DYNAMIC AND
SHIFTING AND CHANGING.
COMING UP WITH POLICIES TO
EFFECTIVELY MANAGE NOT ONLY
ACCESSIBILITY ACCESS, METADATA
MANAGEMENT AND LONGER TERM
RETENTION AND OTHER ISSUE
PARTICULARLY NAUGHTY ISSUE TO
TRY TO GRAPPLE WITH AND AS CH
CHRIS -- CHRISTINA MENTIONED
SOCIETY NEEDS OUR INPUT AND IT'S
A RICH AREA.
SOMETIMES IT KANSAS -- CAN BE A
TROUBLE IDEA BUT DIFFICULT TO
GRAPPLE WITH.
THANK YOU FOR SUMMARIZING THAT.
WE ARE AHEAD OF SCHEDULE AND WE
HAVE TIME TO CONTEMPLATE THESE
OR GO BACK OTHER GROUPS OR ANY
TOPICS BEFORE WE MOVE ON TO OUR
NEXT AGENDA ITEM.
WE FIND OURSELVES WITH 10
MINUTES TO SPARE.
>> HEIDI HAS HER HAND RAISED.
>> BACK TO THE INTRAMURAL
PROGRAM AND I DIDN'T HEAR
COMMENT ABOUT FUTURE RECRUITMENT
OF FACULTY TO THE PROGRAM BUT IN
THINKING ABOUT ANY FUTURE
RECRUITMENT AND PEOPLE MAY LEAVE
OVER TIME OR RETIRE OR WHATEVER,
WOULD THE FOCUS BE ON FINDING
INDIVI
INDIVIDUALS IN THE BROAD AREA
VERSUS IDENTIFYING TARGET AREAS
THE NLM WANTS TO HAVE FOCUSSED
RESEARCH ON HIGH PRIORITY AREAS
VERSUS JUST FIND THE RIGHT
PERSON AND LET THEM DO THEIR OWN
THING.
DOES THAT MAKE SENSE?
THE QUESTION?
>> IT MAKES SENSE.
I WONDER IF VALERIE WOULD LIKE
TO COMMENT ON THAT FIRST.
>> I'D SAY BOTH.
>> WE'D LOVE TO HAVE CREATIVE
PEOPLE.
OF COURSE WE WANT THEM BUT WE
ALSO KNOW THAT WE ARE IN THE
PROCESS OF THINKING ABOUT THE
BIGGER PICTURE OF OUR RESEARCH
AND THE WAY THE OTHER COMMITTEES
ARE TALKING ABOUT WE HAVEN'T HAD
A COMMITTEE DOING IT YET BUT
THERE ISN'T ANY QUESTION IT WAS
COVERED IN THE BLUE RIBBON PANEL
REPORT AND OTHER INTERNAL
REPORTS WE WANT TO TAKE A LOOK
AT THE RESEARCH DIRECTIONS WE
WANT THAT MEET OUR MISSION GOES
AND ALSO WHAT WE HAVE.
WE'RE HOPING THE BUDGET WILL
ALLOW NEW INVESTIGATORS AND WHEN
I SAY NEW, I MEAN NEW TO US.
THEY MAY BE TENURED
INVESTIGATORS BUT I THINK THAT
AS WE HAVE TURNED INTO AN
INTEGR
INTEGRATED IRP PARTICULAR THERE
ARE PLACES I CAN LOOK AND SAY
THERE'S NOTHING IN THE SPACE IT
SEEMS LIKE THERE WOULD BE BUT WE
HAVEN'T PUT TOGETHER THE
DISCUSSION YET TO GET THERE.
>> ANOTHER THING TO THINK ABOUT
IS SYNERGY WITH OTHER PROGRAMS
WITHIN THE MRM.
THE MENTION OF LIT BAR AND
THERE'S BEEN SYNERGY AND
INTEGRATING LITVAR INTO THAT AND
THINKING ABOUT THE AREAS OF
RESOURCE BUILDING AND SERVICES
THE NLM PROVIDES TO THE
COMMUNITY AND HOW TO THINK ABOUT
INTRAMURAL RESEARCH THAT IS
SYNERGISTIC AND CAN HELP BOLSTER
INFORM AND CONTRIBUTE TO THOSE
AREAS OF WORK
>> IF YOU LOOK AT THE LAST FOUR
HIRES FOR P.I.s, I THINK THE
FIRST TWO LAUREN PORTER AND
OTHERS IN THE GROUP CAME FROM A
BROAD PART YEARS AGO AND WE SAW
PEOPLE WITH MANY DIFFERENT
BACKGROUNDS AND GOT THE TWO
BEST.
WE HAVE DR. ANTANI FROM CLINICAL
DATA AND WE'VE SUCCESS WITH BOTH
MODELS BUT THAT'S THE ENSURE
QUESTION WITHIN THE PROGRAM
IDENTIFYING WHETHER THERE MAY BE
GAP OF GREAT OPPORTUNITIES THAT
MATCH WITHIN NLM'S PORTFOLIO.
>> IT'S MY EXPECTATION ONCE WE
HAVE A NEW SCIENTIFIC DIRECTOR
ON BOARD WE'LL OPEN UP NEW
INVESTIGATOR SLOTS.
I'D LIKE TO SEE US GET TO AN
INVESTIGATOR COMPLEMENT 20 IN
THE NEXT FEW YEARS SOME OF WHICH
MAY LEAD TO MORE HIRES SO
INVESTIGATORS LEAVING WE CAN
FILL IN THE COMPLIMENT.
IT'S A VERY COMPLICATED
DISCUSSION EVERY INSTITUTE AND
CENTER HAS A MISSION AND THE
RESEARCH SHOULD SUPPORT THE
MISSION.
OUR SHOULD ADDRESS THE HEALTH
DATA AND THE DISSEMINATION AND
THAT'S PRETTY BROAD.
THE IDEA OF FIND BRIGHT PEOPLE
AND DO BRIGHT THINGS THAT WAS A
RECRUITING STRATEGY FOR QUITE A
WHILE.
WE'RE SEEING A LOT MORE INTEREST
IN TRYING TO BUILD SYNERGY AND
ENGAGEMENT WITHIN IRPs
PARTICULARLY AS IT MAY LEAD TO
THE NEED FOR HIGH PERFORMANCE
COMPUTING RESOURCES OR MAYBE
DEVELOP MEET THE ATTENTION OF
MORE THAN ONE TEAM.
IT WOULD BE MY EXPECTATION WE
HAVE A SCIENTIFIC DIRECTOR
APPOINTED THAT PERSON WOULD
LAUNCH A LONG-RANGE PLANNING
PROGRAM WITH THE COLLABORATION
OF OUR EXISTING INVESTIGATORS TO
LOOK TOWARDS THE FUTURE SO
EVERYONE CAN SEE THEIR FUTURE
AND OUR FUTURE CAN BE INFORMED
BY WHAT OUR PAST AND WHAT
OPPORTUNITIES ARE IN FRONT OF
US.
THANK YOU.
>> ANY OTHER QUESTION OR
COMMENTS OR ANY OTHER WORKING
GROUP TOPICS OR DISCUSSIONS?
>> I HAVE A QUESTION FOR
DR. BAKKEN IF THEY'RE STILL
HERE.
I DON'T SEE THEM ON THE SCREEN.
ONE QUESTION PRESENTED TO US
THIS MORNING WAS A COMMENT
RELATED TO OUR FIVE-YEAR CYCLE
RENEWAL OF OUR TRAINING GROUND.
WE HAVE RAN A STRUCTURED PROGRAM
WHERE AWAY AWARD FUNDS EVERY
FIVE YEARS AND HAVE COMPETITION
ACROSS THE COUNTRY AT THE SAME
TIME AND BOTH SUE AND JIM
MENTIONED OTHER MODELS AND
WONDER IF YOU HAVE IDEAS WE
SHOULD BE THINKING ABOUT OR
ANYONE ON THE CALL.
>> CAN I ADD A TINY PIECE OF
HISTORY?
SORRY, I CAN'T HELP IT.
ORIGINALLY THE NLM'S TRAINING
GRANT PROGRAM WAS DEFINED JUST
FOR US.
AND WE WEREN'T ALLOWED TO
PARTICIPATE IN THE MORE
TRADITIONAL T32s AND THINGS
EVOLVED AND THEY HAVE A
DIFFERENT CYCLE.
ON THE OTHER HAND A LOT OF
CHANGES HAPPENED IN THOSE
PROGRAMS BUT IT'S STILL A FACTOR
OF BUDGET.
THAT'S JUST HISTORY STUFF.
IT DOESN'T MEAN IT CAN'T BE
DONE.
WE HAVE FREEDOM TO DO MORE THAN
JUST THAT KIND OF GRANT.
>> WHEN I JOINED THE NLM WAS
LESS AND WE HAVE ONGOING
COMMITMENTS TO CONTRACTS AND
FUNDING THAT CARRIES FORWARD IN
THE YEARS AND WE'RE GROWING.
WE FOUND MONEY IN INTERESTING
PLACES TO SUPPORT INITIATIVE.
I'M CONFIDENT IF I HAVE THE
IDEAS, I CAN GET THE MONEY.
I DON'T HEAR FROM SUZANNE.
I ASSUME SHE'S NOT WITH US AT
THE MOMENT.
ANY OTHER COMMENTS?
>> A QUICK COMMENT.
I DO THINK IT WOULD BE
INTERESTING TO THINK ABOUT MAYBE
SOME OF THESE OTHER MECHANISMS
AND HOW THEY CAN SUPPORT GROWTH
IN THESE PRIORITY AREAS.
I WONDER IF THERE'S APPETITE OR
OPPORTUNITY FOR DEDICATED TO
SUPPORT MAYBE TWO ENDS OF THE
SPECTRUM AND THERE'S THE IDEA OF
ENGAGING HIGH SCHOOL AND MAYBE
COMMUNITY COLLEGE THINKING OF
RESEARCH YEAR AND INFORMATICS
RETRAINING AND SKILLS BUILDING
FOR PEOPLE EXPANDING THEIR
RESEARCH ACTIVITIES SO I KNOW
WE'VE SEEN THAT A LOT AS OUR
CLINICAL INVESTIGATORS ARE
LEVERAGING THE CLINIC DATA
WAREHOUSE FOR RESEARCH PURPOSES.
IT'S SOMETHING A LOT OF
ENTHUSIASM FOR BUT THE
INFRASTRUCTURE CAN SOMETIMES BE
CHALLENGING TO HAVE IN PLACE AND
MANAGING ON DAILY WORK
RESPONSIBILITIES.
>> THIS, KRISTI.
I'LL FOLLOW-UP WITH RICHARD AND
THE REST OF OUR EXTRAMURAL
PROGRAM.
THANK YOU.
>> THANKS FOR YOUR COMMENTS.
LOLA, DO YOU HAVE A QUESTION?
>> YES, I DO.
SO MY QUESTION HAS MORE TO DO
WITH MAYBE POTENTIAL TYING OF
MECHANISMS.
I'M AT AN INSTITUTION THAT
DOESN'T HAVE DOCTORAL PROGRAMS
BUT INTERESTED IN MASTER'S
PROGRAMS AND INFORMATICS AND
WONDER IF THERE'S A WAY TO HAVE
ALIGNMENT ACROSS INSTITUTIONS
WHERE ONE INSTITUTION CAN
PROVIDE TRAINING OPPORTUNITIES
FOR A PIPELINE TO ANOTHER
INSTITUTION THAT HAS DOCTORAL
PROGRAMS.
SOMETHING ALONG THOSE LINES.
I WONDER WHETHER YOU'VE THOUGHT
ABOUT THAT.
>> WE THOUGHT OF THAT BUT THE
OPPORTUNITY TO DO MATCH MAKING
IS AN IMPORTANT PART OF OUR
FUTURE AND WANT TO REMIND OF OF
THE R25 PROGRAMS BRINGING PEOPLE
OF MASTER'S AND BACHELOR'S INTO
THE PROGRAM TO GET STARTED IN
THE PROGRAM.
>> NOW WE'RE A LITTLE BIT
BEHIND.
I THINK WE CAN MOVE ON TO OUR
NEXT ITEM WHICH IS AN UPDATE
FROM KATY FUNK ON THE PREPRINT
PILOT UPDATE AND NEXT DISCUSSION
AND NEXT STEPS DISCUSSION.
KATY, WITH YOUR GENERIC HOTEL
ROOM ART BEHIND YOU, DO YOU WANT
TO TAKE IT AWAY.
>> I WILL?
DOES THE LOOK LIKE MY SLIDES ARE
SHOWING UP?
>> THERE.
>> GREAT.
I DID SPRING FOR THE $14
INITIATE INTERNET AT THE HOTEL
SO THE STREAM SHOULD BE GOOD.
NONE OF THAT FREE STUFF FOR YOU
GUYS.
I'LL BE TALKING ABOUT THE NIH
PREPRINT PILOT TODAY AND A WANT
TO THANK THE COLLECTIONS WORKING
GROUP FOR THEIR EFFORT IT'S BEEN
ONGOING AND WE APPRECIATE THE
FEEDBACK.
SOME WILL BE RETREADING SO WE'RE
ALL WORKING FROM THE SAME
CONTEXT AND THE ROLE NLM IN
ENABLING ACCESS TO NIH FUNDED
RESEARCH AS THAT TIES INTO THE
SCOPE OF OUR PILOT AND THE
OVERCOME OF THE PREPRINT PILOT
AND THE USER ENGAGEMENT I FIND
INTERESTING AND MOVE TO THE
BROADER CONTEXT AND GET YOUR
THOUGHTS AND THE STANDARD
DEFINITION SLIDE EVERYONE TALKS
ABOUT IT WILL FILL YOU WITH
EITHER DREAD OR EXCITEMENT.
AND HOPEFULLY YOU'LL BE MORE
COMFORTABLE AND THERE'S A
DOCUMENT THAT HASN'T BEEN
PEER-REVIEWED AND IT'S PUBLIC
AND NOT JUST HANGING ON YOUR
SERVER AND HASN'T YET BEEN PEER
REVIEWED AND THERE WAS WERE
PREPRINT PILOTS THAT WENT OUT
AND A NOTICE FROM 2017 THE GUIDE
NOTICE ENCOURAGES INVESTIGATORS
TO HOST PREPRINT PILOT TO SPEED
DISSEMINATION AND ESTABLISH
PRIORITY AND OBTAIN FEEDBACK AND
OFFSET PUBLICATION BIAS.
IT ENCOURAGED INVESTIGATORS TO
SELECT A CREATIVE COMMENTS WITH
ATTRIBUTION OR CCY LICENSE
VIEWED AS THE MOST OPEN AND
LIBERAL OF THE CREATIVE COMMENT
LICENSES OR DEDICATE THE WORK TO
THE PUBLIC DOMAIN A CC0 LICENSE.
AND FOLLOWING STANDARD BEST
PRACTICES THEY REPORT COMPETING
INTERESTS.
AROUND SELECTING REPOSITORIES
FOR PRE PRINTS AND THAT'S
SOMETHING WE RELIED ON HEAVILY
IN DRAFTING OUR OWN ELIGIBILITY
FOR THE PREPRINT PILOT AND
MAKING SURE THE CONTENT IS
FINDABLE, ACCESSIBLE,
INTEROPERABLE AND USABLE AND
FORMATS EASY TO USE BY MACHINES
AND PEOPLE AND HAVE POLICIES ON
PLAGIARISM AND OTHER STANDARDS
THAT ARE RIGOROUS AND
TRANSPARENT AND THE RECORDS OF
CHANGES TO THE PRODUCT.
NEW VERSIONS OF PREPRINTS AND
LINK TO THE PUBLIC VERSION ARE
MAINTAINED ACTIVELY.
AND PREPRINTS AND THEY SEE
PREPRINTS ACCELERATE BEING
CLINICAL RESEARCH AND SHORTENING
THE EVIDENCE TO PRACTICE CYCLE.
I ALSO WANTED TO MENTION OUR
EXTENSIVE EXPERIENCE IN WORKING
WITH THE PEER-REVIEWED
LITERATURE SUPPORT NIH.
PMC HAS BEEN THE REPOSITORY FOR
THE PUBLIC ACCESS POLICY AND
RIGHT NOW WE'RE LOOKING AT A
RATE OF ABOUT 100,000 TO 110,000
PRODUCTS AWARDS ANNUALLY AND
OVER HALF ARE EMBARGOED FOR THE
MAXIMUM ALLOWABLE 12 MONTHS ONCE
DEPOSITED.
50,000 TO 55,000 PAPERS
AVAILABLE 12 MONTHS AFTER
JOURNAL PUBLICATION.
THE ARTICLES UNDER THE POLICY
MAKE UP LESS THAN 20% OF THE
FULL ARCHIVE BUT THEY ACCOUNT
FOR MORE THAN 20% OF THE ARTICLE
VIEWS WE GET ANNUALLY.
THERE'S DEFINITELY OUT THERE IT
SEEMS.
AND FURTHER STARTING IN JANUARY,
FEBRUARY WE WERE SEEING
INCREASED DEMAND FOR PREPRINTS
DISCOVERABILITY FROM RESEARCHERS
IN THE WIDER COMMUNITY IN THE
WAKE OF THE PUBLIC HEALTH
EMERGENCY.
SO IN JUNE OF 2020 WE LAUNCHED
THE PREPRINT PILOT TO MAKE THEM
DISCOVERABLE IN THE PMC AND PUB
MED DATABASES AND TO SERVE THE
COMMUNITY NEED IN PHASE 1.
THAT'S FOCUSSED ON CURATING
PREPRINT RECORDS FOR NIH FUNDING
COVID-19 RESEARCH.
AND I WAS INTENDED TO BETTER
UNDERSTAND OUR ROLE IN ENGAGING
WITH PREPRINTS.
AT A HIGH LEVEL WE WANTED TO
LEARN DO WE HAVE THE TECHNICAL
OPERATIONAL RESOURCES WHAT IS
THE ROLE OF PREPRINT IN NLM IN
EXPANDING THE DISCOVERABILITY OF
NIH RESEARCH RESULTS AND HOW
DOES COLLECTING AND INDEXING
THESE PREPRINTS IMPACT PUBLIC
TRUST IN OUR RESOURCES.
FROM THE OUTSET WE WORKED WITH
THE OFFICE OF STRATEGIC
INITIATIVES TO AIM TO HELP US IN
PLANNING AND IMPLEMENTATION AND
ASSESSMENT AND THE APPROACH WAS
FOCUSSED ON IDENTIFYING THE
INPUTS AND OUTPUTS THAT WERE
NEED
NEEDED AND THAT'S WHAT I WANTED
TO COVER TODAY.
AND IT REQUIRED FINDING THE
SCOPE OF THE PUBLIC.
WE WEREN'T SETTING OUT TO
SUPPORT ALL PREPRINT SERVERS.
WE WANTED CLEAR ELIGIBILITY
CRITERIA.
WE KNEW PRIOR TO COVID A LOT OF
RESEARCH ON META-ARCHIVING AND
RESEARCH NEW ON THE SCENE AND
SINCE IT'S INTEGRATED INTO
SPRINGER NATURE TOOLS IT GREW
AND DIFFERENT DISCIPLINE AREAS
WE WANTED TO MAKE SURE WE WERE
COVERING.
THERE ARE TWO ASPECTS OF THE
WORK FLOWS IN PLACE ESSENTIAL TO
UNDERSTANDING SOME OF THE
OUTCOMES.
FIRST I WANT TO MAKE CLEAR THAT
WHILE THE RECORDS FOR PREPRINTS
THAT WERE CREATED IN PMC AND PUB
MED ALL THE ONES WE IDENTIFIED
HAVE BEEN MADE AVAILABLE IN BOTH
THOSE DATABASES BUT ONLY THOSE
THAT ARE MADE AVAILABLE UNDER A
CREATIVE COMMENTS LICENSE GET
CONVERTED TO THAT FULL TEXT XML
WE TRADITIONALLY SOCIETY WITH
PMC.
ANYTHING UNDER A RESTRICTED
ACCESS OR TRADITIONAL CORPORATE
STATEMENT ONLY HAVE AN ABSTRACT
IN PMC AND HAVE A SERVER WE
POINT TO IN PUB MED AND PMC.
PRE PRINTS UNSURPRISINGLY
HIGHLIGHT THE TRANSITION IN
SCHOLARLY RECORD OF VERSIONS AND
WE WANTED TO ENSURE THE
OCCURRENCE CONTENT WE WERE
MAKING AVAILABLE AND SET UP
AUTOMATED MONITORING FOR
PREPRINT VERSIONS AS WELL AS
PEER-REVIEWED JOURNAL ARTICLES
OF PREPRINTS.
PREPRINT WITHDRAWING NOTICES AND
RUN THE CHECKS A COUPLE TIMES A
WEAK TO MAKE SURE WHAT WE'RE
SERVING IS THE MOST CURRENT
VERSION OF A PAPER.
WE DEVELOP PREPRINT BANNERS THE
ONE IN GREEN FOR EACH RECORD AND
THE PREPRINT CITATION INDICATOR
IN THE CITATION ITSELF AS WELL
AS THE SITE TOOL AND YOU'LL SEE
INDICATORS OF BEING UPDATED IN
OR PUBLISHED IN AND WE SEE THOSE
LINK ARE PRESENT TO MORE RECENT
VERSION WHENEVER WE CAN.
WE SEE THIS AS VITAL TO ENSURING
THERE'S AN UNDERSTANDING OF
PREPRINT AS A RESEARCH OBJECT AS
WELL AS WELL AS VITAL TRUST IN
OUR COLLECTING PRACTICES.
SO WHERE ARE WE NOW?
TO DATE WE FILLED A COLLECTION
OF MORE THAN 3,000 NIH SUPPORTED
PREPRINTS THAT REPORT ON
COVID-19 RESEARCH AND PMC AND
PUB MED AND THE MAJORITY OF THE
PRE PRINTS YOU CAN SEE BY THE
GREEN AND BLUE SECTIONS ON THE
BAR GRAPH HAVE BEEN POSTED TO
META ARCHIVE.
THE PIE CHART YOU SEE ON THE
RIGHT I THINK WOULD BE ON YOUR
RIGHT TOO I'M NOT SURE IF ZOOM
DOES THE FLIP-FLOP THING BUT THE
ONE YOU SEE SHOULD GIVE A SENSE
FOR THE NARROW SCOPE WE'VE BEEN
OPERATING IN WITH PHASE 1 OF THE
PILOT.
IT WAS NEVER AN EFFORT TO
COLLECT ALL PRE PRINTS.
IT WAS GEARED TOWARDS BEING THE
REPOSITORY FOR NIH RESEARCH AND
ENABLING THE DISCOVERABILITY OF
NIH RESEARCH.
AND SO WE ESTIMATE USING DATA
MADE AVAILABLE BY THE I SEARCH
COVID RESEARCH AND IT BEING
INCLUDED IN OUR DATABASES.
WE'VE BEEN UNDERSTANDING NIH
INVESTIGATOR PRACTICES AROUND
LICENSING.
THAT GUIDANCE TO DEDICATE THE
WORK TO THE PUBLIC DOMAIN.
WE FOUND THAT ONLY ABOUT A
QUARTER OF PREPRINTS DO THAT BUT
WE SEE A LARGER CHUNK ADOPTING A
MORE RESTRICTIVE BUT STILL OPEN
LICENSE THAT LAWS FOR
NON-COMMERCIAL AND NO DERIVATIVE
SO THAT LEAVES LESS THAN A THIRD
THAT HAVE THE TRADITIONAL
COPYRIGHT RE-STRICKS TO THE --
RESTRICTIONS TO THE WORK AND
BACK TO THE INPUT AND OUTPUT
DISCUSSION, WE'RE ABLE TO MAKE A
LITTLE OVER TWO-THIRDS IN
MACHINE READING MACHINE XML AND
HMC AND WE HAVE SEEN EVIDENCE
THE AVAILABILITY OF FULL TEXT IN
PMC CAN IMPACT THE RATE OF
DISCOVERABILITY MUCH A PREPRINT
RECORD.
THERE'S BEEN HIGHER RATES OF USE
THAN PUB MED WHICH IS IN PART
DRIVEN BY THE ROLE THAT MACHINE
READABLE FULL TEXT APPEARS TO
PLAY IN THE DISCOVERY OF CONTENT
BY A THIRD-PARTY SEARCH ENGINES.
AND WE'VE DONE FURTHER ANALYSIS
INTO THIS QUESTION LOOKING AT
USAGE DATA AND FOUND HIGHER
MEDIAN AND MEAN RATES OF UNIQUE
USERS ENGAGING WITH PREPRINT
RECORDS OPENLY LICENSED THAN
THOSE MADE AVAILABLE AS CITATION
UNDER RESTRICTIONS TERMS.
IN ADDITION TO INCREASED
DISCOVERY I'D LIKE TO SPEND TIME
TALKING ABOUT ACCELERATED
DISCOVERY AND SOMETHING I'M
TERMING EXPANDED ACCESS FOR LACK
OF A BETTER PHRASE AT THIS
POINT.
WHEN WE LAUNCHED THE PILOT WE
KNEW IT WAS TO ACCELERATE ACCESS
TO NIH SUPPORTED RESEARCH AND
OUR DATABASES PRIOR TO JOURNAL
PUBLICATION.
THAT'S PRETTY MUCH WHAT PRE
PRINTS DO AND ANECDOTALLY HEARD
IN BIO ARCHIVE PREPRINTS ARE
GENERALLY LINKED TO A PUBLISHED
JOURNAL ARTICLE WITHIN SIX TO
SEVEN MONTHS AND I THINK THEY
SAID 75% OF PRE PRINTS IN THEIR
DATABASE ARE LINKED WITHIN SIX
TO SEVEN MONTHS TO A JOURNAL
ARTICLE.
AND SO WE WERE FINDING WITHIN
OUR OWN DATA THAT IT WAS CLOSER
TO ABOUT 100 DAYS ON AVERAGE
WHICH SEEMS TO BE A REFLECTION
OF THAT EXPEDITED PEER-REVIEW WE
SAW DURING COVID AND HIGHER
LIMITS THAN WHEN WE LOOKED AT
THE DATA LAST YEAR.
THAT SAID AND I DON'T KNOW HOW
WELL THIS CHART WILL SHOW ON
YOUR SCREEN BUT SHOWS THE
BREAKDOWN OF BLUE ARE THE
PREPRINTS PUBLISHED OR
ASSOCIATED WITH OUR ARTICLE IN
OUR DATABASES AND THE FURTHER
BACK YOU GO IN TIME PREPRINTS
POSTED EARLY ON IN THE PANDEMIC
ARE MORE LIKELY TO BE NOW
PUBLISHED IN A JOURNAL BUT IT'S
NOT A 100% SORT OF THING.
SO THIS GETS INTO THE IDEA OF
EXPANDED ACCESS.
MAKING AVAILABLE RESEARCH THAT
WOULDN'T OTHERWISE BE IN PMC
UNDER THE PILOT BECAUSE IT'S NOT
SHOWING UP IN A JOURNAL YET TO
THE BEST OF OUR KNOWLEDGE.
AND I DON'T KNOW YET IF THIS
SLIDE IS SUPER HELPFUL BUT IT'S
KIND OF ME TRYING TO WORK
THROUGH THOSE PREPRINTS POSTED
IN 2020 CAN YOU SEE TRENDS WHICH
OF THEM ARE NOW LINKED TO
PUBLISHED VERSIONS AND WHICH
ONES AREN'T AND ARCHIVE A HIGHER
RATE IS NOT LINKED AND MAYBE IT
IS SURPRISING TO SOME AND WHAT I
FOUND ANECDOTALLY AND IN MY
EXPERIENCE IS THAT THAT
COMMUNITY NOT EVERYONE THERE
REALLY IS AIMING TOWARDS THAT
FINAL JOURNAL PUBLICATION.
I WAS SURPRISED I THINK BY A
RESEARCH SQUARE BECAUSE IT IS
INTEGRATED INTO JOURNAL
SUBMISSION PROCESSES THERE'S
STILL A HIGH NUMBER THERE THAT
AREN'T LINKED.
SO I THINK WE'RE STILL GRAPPLING
WITH WHY IS THERE A HIGHER RATE
IN META ARCHIVE AND BIO ARCHIVE
AND DOES IT HAVE ANYTHING TO DO
WITH THE PRE PIRINT OR SOMETHIN
ELSE ON AND THERE'S A NUMBER OF
QUESTIONS THAT DESERVE BETTER
EXPLORATION IN UNDERSTANDING
PUBLICATION BIAS AND THUS
EXPANDING DISCOVERY OF NIH
RESEARCH THAT MIGHT NOT OTHER
WISE SHOW UP IN PMC OR HAS MORE
TO DO WITH AUTHOR MOTIVATIONS
AND POSTI IING PREPRINTS.
THEY MAY NOT PURSUE PUBLICATION
AND MAY NOT FEEL LIKE THEY'RE
THERE YET IN THE COURSE OF THEIR
RESEARCH AND THESE ARE AREAS WE
DON'T KNOW A LOT OF ABOUT YET.
AT THIS POINT I'D LIKE TO SWITCH
GEARS AND DIG INTO THE OUTCOME
MEASURES THAT PERTAIN TO PUBLIC
UNDERSTANDING OF PREPRINTS AND
ANY IMPACT THE PILOT MAY HAVE
HAD ON PUBLIC TRUST IN NLM
DATABASES.
AT THE TIME OF THE PILOT LAUNCH
WE SET UP THIS E-MAIL ALIAS.
IT'S NOT HERE AND WE PUT IT OUT
IN THE WORLD AND I EXPECTED IT
TO BE THIS DUMPING GROUND OF
ANGRY PEOPLE AND IN REALITY IT'S
LARGELY BEEN USED BY AUTHORS
SIMPLY INTERESTED IN HAVING
THEIR PREPRINTS MADE
DISCOVERABLE IN PMC AND PUB MED
WHICH IS A RELIEF ON ONE HAND
BUT ON THE OTHER HAND IT WASN'T
REALLY GIVE US THE INFORMATION
WE WERE LOOKING FOR.
AND I WANT TO GIVE SPECIAL
THANKS TO ALL THE FOLKS OVER
THERE PARTICULARLY KATE MAJEWSKI
WHO CREATED A NUMBER OF THE
SLIDES YOU'RE ABOUT TO SEE AND
BROKE DOWN THE ANALYSES WE HAD
RESEARCH JOURNALISTS AND
CLINICIANS AND OTHERS AND TO
LEARN ABOUT EXPERIENCES AND
PERCEPTION OF PREPRINTS AND TO
GET FEEDBACK ON THE PILOT.
THE FOCUS GROUPS WERE
INTERESTED.
PREPRINTS TURNED OUT TO BE A NEW
CONCEPT TO MANY PARTICIPANTS.
SOME OF WHOM HAD TO LOOK UP WHAT
THEY WERE PRIOR TO THE SESSION.
SO THEY HAD NOT SEEN MY VERY
SCHOOL DEFINITION SLIDE AT THAT
POINT I GUESS.
FROM THESE DISCUSSIONS IT SEEMED
DEFINING A PRE PRINT SAY
DOCUMENT NOT YET GONE THROUGH
PEER REVIEW.
IT'S A CLEAR MESSAGE THAT CAN BE
EASILY COMMUNICATED IF YOU'RE
FAMILIAR WITH PEER REVIEW AND IT
COMES BACK TO THE HEALTH
LITERACY DISCUSSION AND ALL THE
GROUPS WERE ANXIOUS TO KNOW WHAT
SAFEGUARDS NLM HAD IN PLACE TO
MAKE SURE WE WERE PRINTING PRE
PRINTS AS NOT VETTED
INFORMATION.
RESEARCHERS WERE CURIOUS ABOUT
THE POTENTIAL OF PRE PRINTS FOR
A NEW WAY TO SHARE RESEARCH
RESULTS AND WE FOUND LIBRARIANS
RESEARCHERS AND JOURNALISTS ALL
FELT PREPRINTS WERE VALUABLE BUT
CLINICIANS WERE LESS SURE.
SO GET A MORE CONCEPTUALIZED
UNDERSTANDING WE CONDUCTED A
SURVEY AND THIS APPEARED ON
RECORDS FOR PREPRINTS IN AND
PUBMED AND AS WITH THE FOCUS
GROUPS THE SURVEY SHOWED A
NUMBER HAD NOT NECESSARILY HEARD
OF PREPRINTS.
JUST OVER A THIRD OF
RESPONDENTS.
BREAKING IT DOWN BY USER GROUP
OUR SURVEY SHOWED RESEARCHERS
ARE STATISTICALLY MORE LIKELY TO
HAVE HEARD OF PREPRINTS THAN
HEALTH CARE PROVIDERS BUT EVEN
IN THE RESEARCHER GROUP ABOUT A
QUARTER OF THEM STATED THEY WERE
NOT FAMILIAR WITH PREPRINTS OF
THOSE WE HAD A NUMBER OF
QUESTIONS.
I'LL FOCUS ON ONE OR TWO HERE.
THE FIRST WAS HOW IMPORTANT OUR
PREPRINTS AND HOW IMPORTANT IS
IT FOR YOU TO DISCOVER AND
ACCESS THEM.
ON AVERAGE OUR RESPONDENTS
INDICATED PREPRINTS ARE VERY
IMPORTANT ESPECIALLY FOR THE
SCIENTIFIC COMMUNITY AT LARGE
AND EMERGING TOPICS LIKE
COVID-19.
96% FOUND THE ABILITY TO
DISCOVER WAS MODERATELY
IMPORTANT OR 92% OF RESPONDENTS
FELT IT WAS AT LEAST MODERATELY
IMPORTANT TO ACCESS PREPRINTS BY
A PUBMED OR PUBMED CENTRAL AND
THE FOCUS GROUPS ECHOED THE
VALUE OF PREPRINTS ARE IN THE
ACCELERATING SHARING OF RESULTS.
THE INCREASED OPPORTUNITY FOR
RESEARCH EXPOSURE AND THE
POTENTIAL INCREASE QUALITY OF
THE FINAL PRODUCT.
THIS IS SIMILAR TO WHAT NIH
HEARD IN RESPONSE TO ITS REQUEST
TO INFORMATION IN 2016 AND SO
THAT'S HELD FAIRLY STEADY.
THE MAJORITY RESPONDED HAVING
PREPRINTS IN PMC DOESN'T CHANGE
THEIR TRUST IN OUR PRODUCTS BUT
FOR THOSE OF WHOM IT DID, IT WAS
LIKELY TO INCREASE THEIR TRUST.
ON THE NEGATIVE SIDE SAID
SOMEONE THOUGHT A LIBRARY IS
WHERE SOMETHING IS IN FINAL FORM
AND I TAKE THAT POINT WELL.
SEVERAL COMMENTSERS SAID IT
WAS -- COMMENTERS FOR
TRANSPARENCY AND SCRUTINY BY
ALL.
WE SEE THE MOVE OF TRANSPARENCY
ACROSS MEDICAL AND SHARING
RATES.
THE CHARTS ARE MAINTAINED BY
COLLEAGUES AT EUROPE PMC PART OF
OUR PMC NATIONAL NETWORK AND YOU
CAN SEE THEY'RE STARTING TO
LEVEL OFF FROM THE JUMP IN 20
BUT THEY HAVEN'T DIPPED DOWN TO
PRE-2020 RATES AND I SUSPECT
THIS IS DUE TO GREATER AWARENESS
AND PREPRINTS BROUGHT ABOUT BY
COVID AS WELL AS THE EMERGENCE
OF PREPRINT REPOSITORY OPTIONS
LIKE RESEARCH SQUARE WHICH HAVE
BEEN BUILT INTO JOURNAL
SUBMISSION WORK FLOWS WHICH MAKE
THIS EASIER FOR RESEARCHERS.
WE ALSO ARE JUST SEEING TOOLS
ARE EMERGING AND THESE ARE
GEARED AT PROVIDING GREATER
TRANSPARENCY AND ADDITIONAL
CHECK ON SCIENTIFIC QUALITY AND
RIGOR AND PRE-REVIEW AND OTHER
EFFORTS GEARED TOWARDS BUILDING
SOME INFRASTRUCTURE AROUND
PREPRINTS AND ENABLING GREATER
ANALYSIS AND TRANSPARENT REVIEW
OF THIS CONTENT.
WE'RE ALSO SEEING THE NATIONAL
COMMITTEE OF JOURNAL EDITORS
INCORPORATING THIS IN THEIR
RECOMMENDATION AND MUCH MIRRORS
THE NIH GUIDE NOTICE LANGUAGE.
JOURNALS BEING LAUNCHED
REQUIRING PREPRINT POSTING TO BE
CONSIDERED FOR PUBLICATION.
YOU'LL SOMETIMES HEAR OF OVERLAY
JOURNALS THAT SELECT FROM
PREPRINTS MADE PUBLICLY
ACCESSIBLE.
THE SCREEN SHOT HERE E-LIFE WILL
ONLY REVIEW WHAT HAS MET THIS
REQUIREMENT AND WE'RE SEEING
MORE RESEARCH BEING PUBLISHED ON
PREPRINT PRACTICES AND QUALITY.
I THINK I MENTIONED THIS PAPER
ON AN EARLIER SLIDE BUT I FAILED
TO GET IN THE DETAILS OF IT BUT
WHAT WE'RE SEEING ARE FOLKS WHO
ARE INTERESTED IN THE IDEA OF
PREPRINT AS A RESEARCH OBJECT
AND WHERE THEY FIT IN THE LARGER
SCHOLARLY LANDSCAPE AND FINDING
FEWER DIFFERENCES BETWEEN THE
FIGURES AND GREATER DIFFERENCES
BETWEEN ABSTRACT LANGUAGE BUT
NOT IN THE ULTIMATE CONCLUSIONS
AND INTERPRETATION OF THE STUDY
THE ABSTRACT IS SHARING JUST
SHORT OF IN THE WORDS USED TO
EXPRESS IT.
WE'VE ALSO BEEN ACTIVELY
MONITORING PRACTICES BEYOND
COVID-19.
AS WE DETERMINE WHAT OUR NEXT
STEPS MIGHT LOOK LIKE WE'RE
INTERESTED IN UNDERSTANDING WHAT
AN EXPANSION OF PREPRINT
CURATION ACROSS THE SPECTRUM IN
NIH FUNDED RESEARCH MAY END UP
BEING.
AT THIS TIME AND I FEEL LIKE
THESE NUMBERS WILL ALL BE A
LITTLE SQUISHY BECAUSE THESE
PRACTICES ARE FAR FROM SETTLED
BUT WE ESTIMATE FROM 150 TO 300
PREPRINTS SUPPORTED BY NIH MAY
BE POSTED EACH WEEK.
AND WHILE THAT NUMBER SEEMS HIGH
WHEN YOU COMPARE IT TO THE
CURRENT RATE OF 20 TO 50 COVID
PREPRINTS, WHEN YOU THINK OF IT
IN TERMS OF THE NUMBER OF NIH
PUBLICATION THE NIH SUPPORTS
CLOSER TO 2,000 ON AVERAGE EACH
WEEK, THIS IS STILL WE'RE
TALKING ABOUT A PERCENTAGE OF
THE OVERALL PICTURE.
WHAT WE REALLY DON'T HAVE A
SENSE FOR AT THIS TIME IS OF THE
150 TO 300, HOW MANY PREPRINTS
ARE ON TO BE SUBMITTED TO
PREJOURNALS AND OTHER TO THE
CATRY I -- CATEGORY WHERE WE
DON'T KNOW IF THERE'S A
PUBLICATION TO COME.
WE'RE ACTIVELY WORKING TO
ADDRESS SOME OF THE KNOWLEDGE
GAPS IDENTIFIED THROUGHOUT THIS
SORT OF PILOT FACE IN OUR USER
ENGAGEMENT -- PHASE IN OUR USER
ENGAGEMENT EFFORTS AND HAVE
TUTORIALS TARGETED TO LIBRARIAN
TO BRING THAT INFORMATION INTO
STHEIR OWN INSTTHEIR OWN INSTITS
TO BRING THAT INFORMATION INTO
THEIR OWN INSTITUTIONS WITH
TALKED ABOUT THIS BEING A VOICE
FOR NIH AND SEE IT AS A GREAT
OPPORTUNITY HERE AND COULD LEAD
TO IMPROVED LICENSE
UNDERSTANDING AND A NUMBER OF
OPEN AND SCIENCE PRACTICES SEEM
TO BE BUILT INTO PREPRINTS WE
CAN BUILD ON.
WE'RE ALSO WORKING TO BETTER
UNDERSTAND HOW TO COMMUNICATE
NOT JUST PREPRINT STATUS BUT THE
WIDER RANGE IN USER GROUPS
INCLUDING THE GENERAL PUBLIC AND
THIS HAS BEEN A BIG THEME THE
IDEA OF HEALTH LITERACY AND NLMs
ROLE AND OUR SCHOLAR
COMMUNICATION AND SCIENTIFIC
COMMUNICATION FROM PREPRINT TO
FINAL PRODUCT THAT MAY BE
UPDATED OR MIGHT BE RETRACTED OR
WITHDRAWN.
THERE'S SO MANY THINGS THAT CAN
HAPPEN AND HOW DO WE GIVE PEOPLE
THE TOOLS TO UNDERSTAND THE
LANGUAGE THAT'S BUILT INTO THE
SYSTEM.
WITH THAT THIS IS NOT A COMPLETE
LIST BUT A SPECIAL THANKS TO SO
MANY PEOPLE WHO MADE THE PROJECT
POSSIBLE.
IT'S BEEN A JOY TO WORK ON AND
I'M LOOKING FORWARD TO
DISCUSSING TODAY.
WITH THAT I'LL OPEN IT UP.
>> THANK YOU, KATY.
THIS IS ONE I FOUND WITH GREAT
INTEREST AND PLAN FOR THE FUTURE
ON THIS.
THANKS FOR STEWARDSHIP OF THIS
ALONG THE WAY.
IT'S BEEN GREAT TO FOLLOW.
>> THANK YOU.
>> IT'S BEEN WONDERFUL TO STE
THE EVOLUTION OF THE PREPRINT
WORLD MORE SO AND I THINK KATY
SPOKE TO THIS WANTING TO SEE IT
GO FURTHER.
AS THE EDITOR OF A JOURNAL,
TRYING TO FIND PEER REVIEWERS OF
ARTICLE IS A CHRIST RIGHT NOW.
AGE IT'S A CRISIS AMOUNT OF TIME
WE ARE TAKING TO REVIEW ARTICLES
AFTER AGREEING TO DO IT AND I
WAS INTERESTED TO SEE THE NUMBER
OF PREPRINTS THAT AREN'T MOVING
TO PUBLICATION AND WONDERING IF
YOU HAVE A SENSE OF WHY THAT IS
BECAUSE I CAN IMAGINE A FEW
DIFFERENT THINGS.
ONE IS TAKING A LONG TIME TO GET
IT PUBLISHED OR GETTING REJECTED
OR ATTEMPTING TO GO THROUGH THE
PROCESS VERSUS SOME PEOPLE USING
IT AS THE FINAL END POINT FOR
CERTAIN ARTICLES THEY WANT TO
DISSEMINATE BUT DON'T WANT TO
BOTHER AND HOW DO WE THINK ABOUT
THE FUTURE IS THE WHOLE
PUBLICATION SYSTEM AND WHETHER A
LARGE PERCENTAGE OF ARTICLES
DON'T HAVE TO GO THROUGH PEER
REVIEW BUT HAVE A WAY TO BE
DISSEMINATED YET WE NEED TO MAKE
SURE OUR ACADEMIC COMMUNITY GETS
CREDIT BECAUSE SO MUCH WORK IS
BASED ON PUBLICATION.
DO YOU HAVE ANY SURVEYING OF WHY
SOME OF THOSE ARTICLES HAVEN'T
GOTTEN PUBLISHED AND THE
QUESTION OF THINKING ABOUT THAT.
>> I WISH WE HAD MORE DATA AND
HAVEN'T FIGURED OUT THE BEST WAY
TO ASK A RESEARCHER, WHY ISN'T
YOUR PAPER PUBLISHED.
I DON'T WANT TO PUT ANYONE OFF.
I'VE BEEN TRYING TO TAKE
DIFFERENT APPROACHES TO GETTING
AT THAT QUESTION.
I HAD HOPED TODAY I WOULD GO
BECAUSE RESEARCH SQUARE IS
INTEGRATED INTO A JOURNAL
SUBMISSION SYSTEM I WOULD GO AND
IT WOULD BE 99% HAVE BEEN PUSH
ESTABLISHED AND IT'S JUST AUTHOR
MOTIVATIONS IF THEY'RE
SUBMITTING TO A JOURNAL IT GETS
PUBLISH AND IF NOT IT'S MORE THE
75/25 SPLIT.
I DO KNOW ANECDOTALLY COMPUTER
SCIENTIST AND A NUMBER OF FOLKS
IN THE PHYSICAL SCIENTISTS FOLKS
VIEW A PAPER ON ARCHIVE IS
REWARDED.
I CAN'T SPEAK TO WHY WE SEE
SIMILAR RATES OF IN OTHER PRE
PRINT SERVERS OF PRE PRINTS NOT
LINKS TO A JOURNAL ARTICLE YET.
I'D ALSO BE CURIOUS AND THIS IS
HARD TO GET AT WITHOUT GOOD
METADATA AND IT'S NOT SOMETHING
I'VE BEEN ABLE TO PARS OUT BUT
HOW MANY OF THESE MIGHT BE
NEGATIVE OR NO RESULTS THAT
SIMPLY THEY NEVER INTENDED THEY
DIDN'T THINK IT WAS NOVEL ENOUGH
FOR JOURNAL PUBLICATION.
THERE'S SO MANY FACTORS HERE.
I CAN SAY THAT WE HAVE NOT
RECEIVED A SINGLE QUALITY
COMPLAINT ABOUT THESE SO I DON'T
BELIEVE IN MY HEART OF HEART
THESE AREN'T THE 40% IN A
JOURNAL NOT GREAT SCIENCE.
I THINK THERE'S SOMETHING ELSE
ON BUT I THINK THERE'S A LOT OF
NUANCE THERE WE JUST HAVEN'T
TEASED OUT AND HOW YOU BURN OUT
THE SYSTEMIC CHART I DON'T HAVE
A GREAT ANSWER BUT SEEING MORE
FUNDERS ENGAGED IN THIS FIELD
AND SEEING MORE SEEING MORE
JOURNALS TRYING TO OPEN THEM UP,
WE'RE TRYING TO WORK WITH THEM
AS MUCH AS WE CAN TO MAKE SURE
THE ARCHIVAL RECORD REFLECTS
THAT AND THROUGH RESEARCHERS
GETTING MORE COMFORTABLE WE'LL
SEE MORE OF IT.
>> THANK YOU, KATY.
I OVERLOOKED OUR DISCUSSANTS SO
I WANT TO GET BACK TO AND ENSURE
KRISTI AND PAUL WEIGH IN BEFORE
OTHER QUESTIONS ON THIS.
GO AHEAD.
>> I'M THRILLED TO SEE THIS
LEVEL OF CONVERSATION IN THE
TOPIC AND THANK YOU FOR YOUR
LEADERSHIP.
IT'S BEEN WONDERFUL TO WATCH THE
TOPIC EVOLVE OVER TIME AND I WAS
REFLECTING ON YOUR LOGIC MODEL.
THERE'S SEVERAL OUTCOMES AND
IT'S LIKE YOU'RE ADDRESSING ALL
OF THEM IN MEANINGFUL WAYS AND I
THINK ADVANCING THAT
CONVERSATION WITH THE COMMUNITY
SO THAT'S WONDERFUL.
I WANTED TO ASK YOU A QUESTION
ABOUT SOMETHING THAT I KNOW IS
FRONT OF MIND FOR MANY OF US
WHICH IS THE UPCOMING NIH DATA
MANAGEMENT AND SHARING POLICY
AND WHAT ROLE OBJECTS SUCH AS
PREPRINTS AND OTHER TYPE OF
THINGS PLAY IN THAT SCHOLARLY
GRAPH.
HOW WE'RE THINKING ABOUT SHARING
DATA SETS AND OTHER OBJECTS
CREATED THROUGH THE RESEARCH
PIPELINE AND HOW THEY'RE
ASSOCIATED WITH PREPRINTS AND IF
YOU HAVE THOUGHTS ON THAT.
>> THANK YOU FOR THE QUESTION.
IT'S ONE WE'VE BEEN DISCUSSING
INTERNALLY A LOT WHAT COULD BE
THE ROLE OF DATA SETS AND THOUGH
THEY MAY NOT RESULT IN A JOURNAL
PUBLICATION IS THIS AN AREA
WHERE WE CAN INCREASE
DISCOVERABILITY OF NIH-FUNDED
DATA.
EITHER MY LITERATURE SEARCHING
SKILLS ARE DEPLETING, THERE'S
NOT A LOT OUT THERE YET IN MY
VIEW ON THIS TOPIC THAT SHINES A
LIGHT ON IT SO IF WE WENT THAT
WAY WHAT IS THE PRE PRINT NEED
TO LOOK LIKE AND NEED TO CONTAIN
TO BE VALUABLE AS A DATA
PUBLICATION AND WE HAVE SEEN
DATA JOURNALS OUT THERE AND KNOW
WHEN THEY LOOK FOR DATA THEY
START WITH A LITERATURE SEARCH.
FOR NOW THERE'S VALUE IN HAVING
THAT PUBLICATION EVEN IF IT'S A
SHORT ONE ASSOCIATED WITH A DATA
SET TO ENABLE THAT TYPE OF
DISCOVERY.
HOW WE GET FROM PREPRINT TO DATA
MANAGEMENT I THINK WILL BE A
STEP BY STEP PROCESS BUT I LOVE
THE POTENTIAL THERE AND I'M
HOPING IT'S ONE NIH WILL
CONTINUE TO CONSIDER.
THANK YOU FOR THE PRESENTATION
AND THANK YOU FOR THE TEAM AND
THE GREAT WORK YOUR DOING.
I THINK THE PILOT GETS TO WHAT
NEED TO BE DONE IN ANALYZING
SCHOLARLY COMMUNICATION AND IS
THAT PART OF THE BIG
DEVELOPMENTS IN THE NIH
STRATEGIC PLAN.
THIS METHODOLOGY WILL BE KEY IN
LOOKING AT OR ANALYZE NEW MODES
OF COMMUNICATION AND YOU SHOULD
BE COMMENTED FOR THE WORK YOU'RE
DOING NOW.
I THINK YOU NEED TO PUBLIC ABOUT
THIS AND GET DATA OUT ABOUT THE
USER ENGAGEMENT AND GET TO WHAT
HEIDI WAS ASKING ABOUT THAT I
THINK ARE KEY TO UNDERSTANDING
WHAT THE IMPLICATIONS ARE AND TO
SAY THANK YOU FOR ALL YOU'VE
DONE AND OPEN THE FLOOR UP TO
OTHER PEOPLE WHO HAVE QUESTIONS.
>> THANK YOU, PAUL.
>> I'D LIKE TO REITERATE THE
COMMENT TOO ABOUT THE WORLD
NEEDS TO HEAR ABOUT THIS AND
WE'VE BEEN FOLLOWING IT EAGERLY
AND THIS MUCH DATA FOR THE
COMMUNITY TO HEAR ABOUT.
I THINK JIM IS UP FIRST.
>> DO WE KNOW WHEN A PAPER'S
PUBLISHED THE PRE PRINT IS TAKEN
DOWN?
>> IN OUR OWN DATABASES AND
PREPRINT PRACTICE IT'S NOT TAKEN
DOWN AND IF THEY'RE ON A
PREPRINT RECORD THEY SEE A CLEAR
LINK TO THE JOURNAL ARTICLE BUT
WE DON'T TAKE IT AWAY.
WE PRESERVE THE RECORD AND MAKE
IT TRANSPARENT.
>> LET ME CHANGE MY QUESTION.
HOW GOOD ARE THE LINK BETWEEN
THE PRE PRINTS AND PUBLISHED
RECORDS?
>> I ASSUME THERE'S A PLUS/MINUS
RECORD WE'RE MISSING.
I WILL GET INTO IT A BIT AS TO
WHAT WE DO.
THE WAY WE'RE DOING IT RIGHT NOW
IS WHEN WE LAUNCH THE PILOT WE
HAD CONNECTIONS AND WITH ALL DUE
RESPECT IT'S NOT A LOT.
OUR COLLEAGUES AT EUROPE PMC
WERE ALSO WORKING ON THESE SORT
OF MATCHINGS SO WE'VE BEEN AND
THE MOST PRODUCTIVE IS USING OUR
OWN DATABASES AND RUN THE
ABSTRACT CHECK AND ANYTHING
REASONABLE AND SEE SIGNIFICANT
CHANGES FROM ABSTRACT TO
ABSTRACT AND DON'T SPEND A LOT
OF TIME IN VER -- VERBATIM PER
ABSTRACT BUT I THINK TO DATE
WE'VE ONLY BEEN NOTIFIED BY ONE
AUTHOR WHO MENTIONED WE MADE A
LINK VERSUS NOT AND WERE ABLE TO
ADDRESS THOSE AS THEY CAME UP.
>> I WOULD NOT BE SHY ABOUT
CONTACTING AUTHORS.
AND TO GIVE NON-THREATENING
CHOICES AND CONTINUE TO PUBLIC
AND HERE'S THE LINK.
SOMETHING LIKE THAT.
I'M GLAD TO KNOW ONE AUTHOR IN
THE WORLD MAY NOT BE STRESSED BY
THIS.
>> ONE MORE QUESTION BEFORE
EVERYBODY STAMPEDES OFF TO
AFTERNOON BREAK.
>> WHAT ARE THE MISSING TOOLS I
NEED AS EDITOR-IN-CHIEF AND THE
NURSE EDITOR LIST WAS HOW DO WE
USE THE REVIEWS AND IS IT
INCREASING THE NUMBER OF
REVIEWERS WE MIGHT INVITE FOR
ARTICLES BUT THERE'S NOT A REAL
EASY TOOL AND FOR THAT I REALIZE
WE DON'T ASK THE AUTHORS TO SAY
THAT IN A COVER LETTER AND WE
DON'T AUTHENTICATE EXCEPT THE
FIRST REVISION AND WHEN I FIND
SOMETHING'S BEEN ON A PREPRINT
SERVER IT DOESN'T ALWAYS COME UP
WHAT WE'RE PURSUING SO THINKING
GIVEN WHAT YOU HAVE THE TYPE OF
THINGS YOU'VE DISCUSSED WHAT ARE
THE TYPES OF THINGS I NEED TO
PUT INTO MY WORK FLOW TO TAKE
ADVANTAGE OF THE PERSPECTIVES
THAT HAVE BEEN GENERATED THROUGH
THE PRE PRINT PROCESS.
IT'S NOT REEL A QUESTION.
>> WE'RE SEEING -- I HEAR ON
BOTH SIDES LIKE IN CLOSED PEER
REVIEW SYSTEMS YOU'RE HEARING
ABOUT PORTABLE PEER REVIEW AND
LETTING AUTHORS TAKE THEM WITH
THEM OR SHARING BUT I THINK THE
TRANSPARENT SYSTEM REMOVES THAT
AND HAVING EDITORIAL MANAGER
SYSTEMS TO TALK TO EACH OTHER
FROM THE EQUATION AND PUTS IT
OUT THERE.
I'M OPTIMISTIC ABOUT IT.
>> THANK YOU FOR A GREAT
DISCUSSION AND THANK YOU KATY
AND TEAM FOR GREAT WORK ON THIS.
WE'LL NOW MOVE TO BREAK.
BE BACK BY 2:45 FOR OUR NEXT
PRESENTATION.
THANK YOU.
I'D LIKE TO INTRODUCE OUR NEXT
SPEAKERS PROFESSOR OF MEDICINE
UNIVERSITY OF CALIFORNIA
DR. DEAN SCHILLINGER FROM THE
DIVISION OF GENERAL INTERNAL
MEDICINE AT ZUCKERBERG SAN
FRANCISCO GENERAL AND IS A
PRACTICING PRIMARY CARE
PHYSICIAN AND TEACHES IN THE
PRIMARY CARE RESIDENCY PROGRAM
AND CONDUCTS RESEARCH.
DR. SCHILLINGER CARRIES OUT
RESEARCH RELATED TO HEALTH CARE
FOR VULNERABLE POPULATIONS AND
IS AN INTERNATIONALLY RECOGNIZED
EXPERT IN HEALTH COMMUNICATION
SCIENCE.
HIS WORK FOCUSES ON LITERACY AND
CHRONIC DISEASE AND MANAGEMENT.
DR. NICHOLAS DURAN IS AN
ASSOCIATE PREVENTION IN THE
SCHOOL OF SOCIAL AND BEHAVIORAL
SCIENCES IN THE NEW COLLEGE OF
INTERDISCIPLINARY ARTS AND
SCIENCES AT ARIZONA STATE
UNIVERSITY.
HIS RESEARCH FOCUSES ON THE
INTERPLAY BETWEEN COGNITION,
LANGUAGE AND ACTION AS
INDIVIDUALS AND GROUP ENGAGE IN
COMPLEX REAL-WORLD TASKS.
HE APPLIES INSIGHTS GLEAN FROM
THE RESEARCH PROGRAM TO BUILD
NEW COMPUTATIONAL TOOLS AND
METHODS TO HELP PEOPLE BECOME
BETTER COMMUNICATORS AND
LEARNERS.
THEY ARE BOTH HERE TO DISCUSS
THEIR NLM FUNDED GRANT ENTITLED
PRECISION COMMUNICATION
PHYSICIANS AND LINGUISTIC
ADAPTATION TO PHYSICIAN HEALTH
LITERACY.
THANK YOU FOR BEING HERE AND
WELCOME TO TO DEAN AND NICHOLAS.
>> THANK YOU.
I AM GOING TO BE SHARING MY
SLIDES.
>> WE'LL SHARE HIGH-LEVEL
RESULTS FROM THE ECLIPSE PROJECT
AND SPECIFICALLY DESCRIBING HOW
THIS WORK HELPS TO THE FIELD OF
COMMUNICATION WITHIN THE LARGER
CONSTRUCT OF PRECISION MEDICINE.
IT'S A COLLABORATION BETWEEN USF
AND ARIZONA STATE UNIVERSITY AND
NORTH CALIFORNIA KAISER DIVISION
OF RESEARCH AND GEORGE STATE
UNIVERSITY AND OTHER SUPPORT
FROM THE NIDDK.
THE ROAD MAP FOR THE
PRESENTATION IS I'LL PROVIDE
BACKGROUND AROUND THEN USE THIS
TERM THE ECLIPPINGS -- ECLIPSE
AND THE METAPHOR FOR CARE
THROUGH THE USE OF COMPUTATIONAL
LINGUISTIC ANALYSES AND REVIEW
THE AIMS.
THE FIRST WAS THE WORK TO
DEVELOP AND VALIDATE NEW
MEASURES OF BOTH PATIENT HEALTH
LITERACY AND IN PARALLEL
LINGUISTIC COMPLEXITY.
THE SECOND AIM IS TO EXPLORE THE
EFFECTS OF CONCORDANCE OR
DISCORDANCE BETWEEN PATIENT'S
HEALTH LITERACY AND THE
PATIENT'S LINGUISTIC COMPLEXITY
ON OUTCOMES AND CLOSE WITH
IMPLICATIONS FOR WHAT WE HOPE
WILL BE A LARGER RESEARCH AGENDA
AROUND THE FIELD OF PRECISION
COMMUNICATION.
PRE VISION INITIATIVE IS TO
TAILOR ERS AND PREVENTION
STRATEGIES TO PEOPLE'S UNIQUE
CHARACTERISTICS.
THIS HAS MEANT THE MAJORITY OF
PRECISION MEDICINE RESEARCH HAS
INVOLVED RESEARCH RELATED TO
TAILORING TREATMENTS TO PEOPLE'S
UNIQUE GENETIC MAKEUP, THEIR
MICROBIOME COMPOSITION ETCETERA
AND THAT REQUIRED INCORPORATING
DIFFERENT TYPE OF BIG DATA FROM
METABOLOMICS TO MICROBIOME TO
BETTER UNDERSTAND HOW PRECISION
MEDICINE CAN BE DELIVERED.
IN CONTRAST, DESPITE THE
CENTRALITY TO HEALTH CARE AND
COMMUNICATION OUTCOMES THERE'S
BEEN LITTLE RESEARCH THAT LOOKED
AT CLINICIAN LEVEL SKILLS AND
STYLES AND BIG LINGUISTIC DATA
HAS NOT BEEN DERIVED FROM THE
COMMUNICATION EXCHANGES TO
ADVANCE PRECISION MEDICINE
THROUGH PRECISION COMMUNICATION.
PATIENT-PHYSICIAN AND
PATIENT-CLINICIAN COMMUNICATION
IN GENERAL IS A PILLAR OF CARE.
FOR ANYBODY'S WHOSE BEEN SICK OR
A CAREGIVER FOR A LOVED ONE WHO
IS SICK WE CAN APPRECIATE HOW
IMPORTANT COMMUNICATION IS TO
EVERY ASPECT OF THE HEALTH CARE
TRAJECTORY.
IT GOES TO WHETHER AND HOW AN
INDIVIDUAL DECIDES TO SEEK CARE,
COMMUNICATION CAN ENABLE OR
IMPEDE ACCURATE DIAGNOSES AND
FOSTER SOUND CLINICAL MAKING AND
ENGENDER TRUST AND FACILITATE
PATIENT UNDERSTANDING AND ENABLE
SELF-MONITORING AT HOME AND
SUPPORT PROBLEM SOLVING AND
SELF-MANAGEMENT OF ONE'S CHRONIC
CONDITION.
A FUNDAMENTAL PILLAR AND WE KNOW
ONE OF THE CENTRAL ROLES OF
COMMUNICATION IN HEALTH CARE IS
TO ACHIEVE MUTUAL UNDERSTANDING
OR WHAT IS KNOWN AS SHARED
MEANING WITH MEANING AND THIS
MAY BE PROBLEMATIC WITH PATIENTS
WITH HEALTH LITERACY.
IT'S BEEN DEFINED BY THE
NATIONAL ACADEMY OF MEDICINE
ADDS THE DEGREE TO WHICH
INDIVIDUALS HAVE THE CAPACITY TO
OBTAIN, PROCESS AND GET HEALTH
SERVICES TO MAKE HEALTH
DECISIONS AND THOUGHT THE
SPEAKING AND LISTENING AND
WRITTEN HEALTH LITERACY AND NURM
NUMERACY TO MAKE CALCULATIONS
AND THE RELIANCE ON DIGITAL
MEANS OF COMMUNICATION AND
PATIENT PORTALS TO ENABLE THE
DIRECT COMMUNICATION BETWEEN
PATIENTS AND PROVIDERS HAS
SUGGESTED THAT PERHAPS THERE'S
AN ADDITIONAL RELATED DOMAIN OF
HEALTH LITERACY RELATED TO
DIGITAL COMMUNICATION.
WHILE THE FIRST DECADE CENTERED
ON THE PATIENT ON THE FULCRUM ON
THEIR LITERACY DEFICIT WAS THE
FOCUS, INCREASINGLY IT'S A
BECOME CLEAR WE SHOULD ROW FOCUS
THE LENS TO THE HEALTH CARE
SYSTEM IN TERMS OF THE DEMANDS
PLACED ON INDIVIDUALS TO RECEIVE
OUR COMMUNICATIONS AN IF WE CAN
REBALANCE THIS CAPACITY AND
DEMAND EQUILIBRIUM TO REDUCE THE
MISMATCH WE MAY ACHIEVE CLINICAL
AND PUBLIC HEALTH GAINS AND THIS
HAS LED TO THE CREATION OF
HEALTH LITERATE HEALTH CARE
ORGANIZATION MAKING INFORMATION
GAINING MORE ACCESSIBLE TO ALL
INDIVIDUALS AND FAMILIES.
OUR WORK FOCUSES ON HOW THIS
AFFECTS HEALTH CARE POPULATIONS.
WE KNOW LITERACY IS IMPORTANT.
THERE'S BEEN A LOT OF RESEARCH
IN THE LAST TWO DECADES PROBABLY
MOST SPECIFICALLY IN DIABETES
THAT SHOW LIMITED HEALTH
LITERACY IS INDEPENDENTLY
ASSOCIATED WITH A HIGHER
PREVALENCE OF TYPE II DIABETES
AND THE PREVALENCE OF HEALTH
LITERACY IS HIGH AND IT DEPENDS
ON THE SETTING IN WHICH SOME
PATIENTS RECEIVE THEIR CARE AND
SOME PATIENTS HAVE HALF THE
HEALTH LITERACY AND RATES ARE
HIGHEST IN THE ELDERLY AND IN
PUBLIC HEALTH CARE SETTINGS AND
HAS BEEN SHOWN TO BE ASSOCIATED
WITH IMPORTANT DISEASE OUTCOMES
INCLUDING BLOOD SUGAR CONTROL
AND DIABETES COMPLICATIONS OVER
THE LONG TERM AND MULTIPLE
PATHWAYS ACCOUNT FOR THIS AND
THE COMMUNICATION ATTRIBUTES OF
HEALTH SYSTEMS HAVE BEEN SHOWN
TO ACCOUNT FOR AT LEAST SOME OF
THE HEALTH-RELATED DISPARITIES.
WHEN WE ADMINISTER PATIENT
SATISFACTION SURVEYS TO PATIENTS
IN HEALTH CARE SETTINGS ALMOST
ALL OF WHICH RETURN SURVEYS THAT
SAY THEY'RE VERY SATISFIED WITH
THEIR PHYSICIANS APPROXIMATELY
THREEFOLD GREATER DEGREE OF
DISSATISFACTION FOR DIABETES
PATIENTS REPORTING THEIR DOCTOR
OFTEN USES WORDS THEY DON'T
UNDERSTAND AND ARE CONFUSED
ABOUT THEIR CARE AND GET TEST
RESULTS THEY DON'T UNDERSTAND.
IMPROVING COMMUNICATION MAY BE A
VERY IMPORTANT MEANS TO REDUCE
HEALTH-LITERACY RELATED
DISPARITIES IN CHRONIC DISEASE
CARE.
ELECTRONIC HEALTH RECORDS ARE
THE RAGE.
PATIENT PORTALS ARE PENETRATING
EVERY HEALTH CARE SYSTEM AND
THIS IS SEEN AS A BOON TO
CONDITIONS LIKE DIABETES BECAUSE
THERE'S A REAL NEED FOR BETWEEN
VISIT COMMUNICATION BETWEEN
PATIENTS AND PHYSICIANS AND NOW
CAN COMMUNICATE THREE A PORTAL
AND PROVIDES DIGITAL HEALTH
LITERACY ON BOTH SIDES.
DESPITE THE EXPLOSION OF
COMMUNICATION NO RESEARCH TO
DATE HAS EMPLOYED COMPUTATIONAL
LINGUISTICS TO HARNESS THE DATA
TO MEASURE HEALTH LITERACY OR
THE LINGUISTIC COMPLEXITY.
THIS RESEARCH IS CHALLENGING AND
MEASUREMENT FOR RESEARCH STUDIES
IS INCREDIBLY TIME CONSUMING AND
REQUIRES ONE-ON-ONE INTERVIEWS
OF PERFORMANCE WE'RE APPLYING
NATURAL LANGUAGE PROCESSING AND
MACHINE LEARNING TO DEVELOP AND
VALIDATE NOVEL STEPS OF NEW
MEASURES RELATED TO HEALTH
LITERACY.
WE'RE HARNESSING BIG DATA
REQUIRING LARGE AMOUNTS OF DATA,
TRANSFER CLEANING AND
CONFIRMATORY RESEARCH REFLECTS
BASIC SCIENCE AND METHODS
RELATED TO HEALTH CARE AND
TRANSLATIONAL RESEARCH THAT
REQUIRED INTERDISCIPLINARY
COLLABORATION.
YOU AGREE TO UNDERSTAND AND
STUDY THE SUN AND FIRST THE
ATTRIBUTES AS GOOD SCIENTISTS WE
CANNOT LOOK DIRECTLY AT THE SUN.
THE WAY OVER TIME WE HAVE BEGUN
TO LEARN AND UNDERSTAND MORE
ABOUT THE SUN IS BY TAKING
ADVANTAGE OF THE ECLIPSE WHICH
ALLOWS US BECAUSE OF THE FULL
SHADOW OR PARTIAL SHADOW ALLOWS
US ON EARTH TO SEE ASPECTS OF
THE SUN TO DRAW INFERENCES ABOUT
THE SUN.
DEPENDING ON WHERE L THEAR
ECLIPSE WE CAN SEE DIFFERENT
ASPECTS AND CREATE A FULL
PICTURE OF THE SUN BUT CAN NEVER
REALLY LOOK AT THE SUN AS DIRECT
OBSERVERS.
SIMILARLY WITH TO HEALTH
LITERACY THE ECLIPSE PROJECT
USES THE FOLLOWING STRATEGIES.
WE'RE SITTING ON THE EARTH AND
TRYING TO UNDERSTAND HEALTH
LITERACY AND MEASURE THE
DIMENSIONS OF THE SUN AND
MEASURE HEALTH LITERACY AND IT'S
SEEN AS THE SCIENTIFIC TRUTH.
THE SPECIMENS WE ARE USING TO
TRY TO UNDERSTAND THE TRUTH WHAT
HEALTH LITERACY IS AND HOW TO
MEASURE IT IS THE COMPONENT
LANGUAGE DEN RA -- GENERATED BY
PATIENTS AND THEIR SECURE
MESSAGES.
I RELIED ON MY COLLEAGUES WHO
ARE EXPERTS TO APPLY THIS
AGNOSTIC TO THE MEANING OF THE
WORD.
NOT READING AND INTERPRETING THE
WORD BUT UNDERSTANDING THE
ATTRIBUTES OF THE LANGUAGE BEING
PRESENTED BY THE PATIENT USING
NATURAL LANGUAGE PROCESS AS THE
OLS AND METHODS AND THROUGH
MACHINE LEARNING TECHNIQUES WE
CAN ESTABLISH THAT THESE NOVEL
MEASURES ARE VALID OR NOT VALID
BY OUR VALIDATION STANDARDS.
VALIDATION BEING CONTENT
VALIDITY WITH REPRESENT TO
SELF-REPORT AS THE GOLD
STANDARDS AND PREDICTIVE
VALIDATION WITH RESPECT TO THE
RELATIONSHIP BETWEEN THE
MEASURES AND HEALTH OUTCOMES
MEASURES.
THIS IS THE UNDERLYING RATIONALE
IN THE APPROACH TO MEASURE
HEALTH LITERACY AND IN PARALLEL
PHYSICIAN LINGUISTIC COMPLEXITY.
THESE ARE ESTIMATES ON OUR
ESTIMATIONS STANDING BEHIND THE
MOON.
THE SPECIFIC AIMS WERE TO EMPLOY
NLM AND MACHINE LEARNING TO
SECURE MESSAGE CONTENT BY
ENGLISH-SPEAKING DIABETES
PATIENTS AND THEIR PROVIDERS.
WE WANTED TO DEVELOP AND
VALIDATE NOVEL MEASURES OF
LINGUISTIC COMPLEXITY AND ASSESS
WHETHER THEY HAD CONTENT AND
PREDICTIVE VALIDITY.
IF WE CAN SHOW THOSE TO BE TRUE
IN AIM 2 DR. DURAN WILL REVIEW
WITH US, THE GOAL WAS TO EXAMINE
WHETHER CONCORDANCE OR MATCHING
BETWEEN A PHYSICIAN'S LINGUISTIC
COMPLEXITY AND THEIR PATIENT'S
HEALTH LITERACY LEVELS WERE
ASSOCIATED WITH BETTER OUTCOMES.
SPECIFICALLY IN THE CASE
COMMUNICATION OUTCOMES.
AND GET AUTOMATED FEEDBACK TO
BEST TAILOR THEIR LANGUAGE TO
MEET THAT OTHER PATIENT'S HEALTH
LITERACY.
AIM 1, THE GOAL WAS TO GENERATE
NOVEL HEALTH LITERACY MEASURES.
WE DEVELOPED AUTOMATED TOOLS AND
EXCHANGED BETWEEN 12,000
ETHNICALLY DIVERSE DIABETES
PATIENTS IN AN INTEGRATED HEALTH
CARE SYSTEM.
WE MERGED THE DATA WITH DETAILED
SURVEY AND CLINIC DATA FROM A
COHORT FROM THE KAISER DIABETES
POPULATION.
THIS INVOLVED OVER 400,000
SECURE MESSAGES THAT WERE
ULTIMATELY ANALYZED INVOLVING
ABOUT 7,000 PATIENTS WITH
TREMENDOUS ETHNIC DIVERSITY THAT
REPRESENTS THE POPULATION OF
NORTHERN CALIFORNIA.
THIS IS A SIMPLIFIED FLOW
DIAGRAM OF THE CLEANING THAT WE
NEEDED TO DO TO IDENTIFY THE
FINAL HEALTH LITERACY SAMPLE ON
THE PROFILE ON THE RIGHT SHOWING
ABOUT 430,000 OR SO SECURE
MESSAGES THAT WERE ANALYZED
USING COMPUTATIONAL
LINGUISTILINGUILINGUISTICS.
THERE WERE OVER 180 APPLIED TO
THE LINGUISTIC CORPUS AND WERE
ASSESSED USING MACHINE LEARNING
TO ASSESS THIS AND I'LL SKIP
SOME OF THESE AND SOME WERE FOR
CLASSIFICATION PROBLEMS.
WE WERE FIRST ABLE TO SHOW IN
THIS CASE THE GOLD STANDARD WAS
EXPERT RATED HEALTH LITERACY IN
A SUBSET OF THE 300,000 OR SO
SECURE MESSAGES.
THE MACHINE CREATED NLP AND WAS
STRONGLY PREDICTIVE OF THE
SECURE MESSAGES AND THIS AREA
UNDER THE CURVE WAS VERY SIMILAR
ACROSS THE DIFFERENT RACIAL AND
ETHNIC GROUPS IN OUR SAMPLES
SUGGESTING IT HAD CONTENT
VALIDITY ACROSS A DIVERSE
SAMPLE.
WE THEN EXPLORED PREDICTIVE
VALIDITY AND YOU SEE THE OTHER
POPULATION AND THE OTHER COLORS
THE SUB POPULATIONS OF DIFFERENT
RACIAL AND ETHNIC GROUPS OVERALL
OUR HEALTH LITERACY MEASURE DID
PREDICT POOR PHYSICIAN
COMMUNICATION, POOR MEDICATION
ADHERENCE AND A MEDICATION SIDE
EFFECT, VERY POOR DIABETES
CONTROL AND GREATER UTILIZATION
OF SERVICES.
WE WERE ABLE TO SHOW IN 7,000
PATIENTS AN AUTOMATED HEALTH
LITERACY MEASURE HAD CONTENT AND
PREDICTIVE VALIDITY WITH
PATIENT-RELATED OUTCOMES AND
DIABETES AND WE ESTABLISHED THIS
MEASURE AND HAD A VALIDATED
MEASURE OF PHYSICIAN'S
LINGUISTIC COMPLEXITY AND NOW
THE QUESTION WAS WHAT HAPPENS
WHEN YOU PUT THEM TOGETHER.
DOES CONCORDANCE OR DISCORDANCE
IN LINGUISTIC COMPLEXITY MATTER.
I'LL DRIVE FOR YOU.
>> SO WE BELIEVE HEALTH
COMMUNICATION IS CRITICAL FOR
TAILORING AND DEVELOPING
PREVENTION STRATEGYIES WHAT DOE
IT MEAN TO BE PRECISE IN
INTERPERSONAL COMMUNICATION?
ONE IMPORTANT WAY IS TO
COMMUNICATION TO CREATE A SENSE
OF SHARED COMMON GROUND BY
ACCOMMODATING TO THE EXPECTED
ABILITIES AND NEEDS OF A
COMMUNICATION PARTNER.
FOR PHYSICIANS LITTLE IS KNOWN
ABOUT THE PREVALENCE OF
LINGUISTIC
CONCORDANCE/DISCORDANCE AND
DISCORDANCE ON PATIENT
COMPREHENSION OR WHETHER THEY
AFFECT BY PATIENT
CHARACTERISTICS.
BEAR WITH ME AS I ATTEMPT TO
GIVE YOU A WHIRLWIND ACCOUNT OF
WHAT WE DID IN ADDRESSING THE
ISSUES IN UNDER 10 MINUTES.
I PROMISE.
SO USING THE ECLIPSE STUDY
SAMPLE DEAN DESCRIBED IN AIM 1,
OUR FIRST OBJECTIVE WAS TO
IDENTIFY CONCORDANT VERSUS
DISCORDANT GROUPS ACROSS THE
PATIENT DIADS.
THERE'S BEEN MANY MESSAGES AND
IN RETURN PATIENTS SENT MANY
MESSAGES TO THEIR DOCTORS.
THERE WERE 1,143 PRIMARY CARE
PHYSICIANS IN OUR CORPUS WHO
SEPT OVER 100,000 SECURE
MESSAGES TO THE UNIQUE PATIENTS
WHO IN RETURN SENT THE SAME
AROUND THE SAME NUMBER OF SECURE
MESSAGES TO THEIR DOCTORS.
IN AGGREGATING THE MESSAGES EACH
PERSON WROTE AROUND 1300 WORDS.
WITH EACH PERSON'S AGGREGATED
MESSAGE STEP THE NEXT STEP WAS
WHETHER THEY USED LANGUAGE
PREDICTIVE OF HIGH OR LOW HEALTH
LITERACY.
EACH MESSAGE WAS FIRST ASSESSED
FOR WHICH NINE LINGUISTIC
FEATURES WERE MEASURED.
THESE WERE IDENTIFIED IN AIM 1
AND SUPERVISED MACHINE LEARNING
PROCEDURE.
IN THAT PROCEDURE MORE DETAIL WE
STARTED WITH 100 LINGUISTIC
FEATURES TRAINED AGAINST A SET
OF MESSAGES THAT EXPERTS RATED
AS INDICATING HIGH OR LOW HEALTH
LITERACY.
THE RESULTING LINGUISTIC
FEATURES, THOSE THAT BEST
DELINEATED BETWEEN HIGH AND LOW
WERE THEN EXTRAPOLATED TO
PREDICT THE VALUE OF NEW
MESSAGES.
THE SAME PROCESS WAS DONE HERE.
HERE THEY ARE IN THEIR FULL
SPLENDOR BUT FOR EACH DO NOTICE
THE FEATURES NOW BELONG TO BROAD
CATEGORY OF LANGUAGE LIKE SYNTAX
AND DIVERSITY AND
SOPHISTICATION.
IT'S THE TOTALITY OF THE
FEATURES AND THEIR INTERACTIONS
THAT GIVE RISE TO THIS
HIGH-LEVEL REPRESENTATION OF
HEALTH LITERACY COMPETENCIES.
I SHOWED WHERE THE SAME
PROCEDURE WAS USED WHETHER THE
MESSAGES WERE HIGH OR LOW
COMPLEXITY.
SO OF COURSE THE LINGUISTIC
FEATURES IN AIM 1 ARE UNIQUE TO
THE POSITION.
IN AIM 1 THEY COME FROM A MODEL
TRAINED AGAINST A SET OF
PHYSICIAN COMMUNICATIONS EXPERTS
RATED AS BEING MORE OR LESS
COMPREHENSIBLE TO A STRUGGLING
READER.
HERE'S THE RESULTING FEATURE.
THOUGH NONE OF THE FEATURES WERE
FOUND IN THE CATEGORY THEY WERE
RELATED TO COGNITION AND
SENTIMENT.
IT'S NOT CRITICAL TO UNDERSTAND
INDIVIDUAL FEATURES.
WHAT IS CRITICAL IS THE
CONSTRUCT OF COMPLEXITY AS IT
APPEARS TO STRUGGLING READERS
EMERGES FROM THE TOTALITY IN
MACHINE LEARNING MODELS TRAINED
TO PREDICT EXPERT RATINGS.
SO NOW WE HAVE A DOCTOR,
PHYSICIAN A WHO'S AGGREGATED
MESSAGES IS AT EACH THREE
MESSAGES ARE PREDICTED TO BE OF
HIGH OR LOW COMPLEXITY AND WE
HAVE THE PREDICTED HEALTH
LITERACY SCORE FOR EACH PATIENT
BASED ON MESSAGES.
AND THE NEXT STEP WE DETERMINE
WHETHER THE MESSAGES SENT
BETWEEN EACH PATIENT-PHYSICIAN
DIAD REFLECT A CONCORDANT OR
DISCORDANT MESSAGE AND THERE'S
TWO POSSIBILITIES HIGH
COMPLEXITY AND LOW LITERACY OR
LOW COMPLEXITY AND A HIGH HEALTH
LITERACY.
AND WE CAN TURN TO THE ISSUE OF
PREVALENCE.
AND THE BOTTOM ROW 53% OF THEM
HAD A DOCTOR WHO USED LANGUAGE
HIGH COMPLEXITY DISCONCORDANT
WITH THEIR UNDERSTANDING.
DID THIS MATTER IN TERMS OF HOW
PATIENTS UNDERSTAND THEIR
DOCTORS?
TO BEGIN TO ANSWER THE QUESTION
WE DRAW ON A LARGE SCALE SURVEY
THAT PATIENTS COMPLETED WHILE
UNDER THE CARE OF THEIR DOCTOR.
AND THEY WERE ASKED HOW MANY
TIMES DOES YOUR DOCTOR
EXPLAINING THINGS IN A WAY YOU
CAN UNDERSTAND AND JUST AS MEANS
TO ORIENT YOU, IN THE NEXT SLIDE
I'LL SHOW A RESULTS TABLE FROM A
MIXED EFFECTS LINGUISTIC
REGRESSION.
THE RESULT IS FOR LOW HEALTH
LITERACY PATIENTS ONLY AND
THERE'S A NUMBER OF
PATIENT-LEVEL COVARIATES WE CAN
DISCUSS BUT IMPORTANT IS THE
DASH BOX AT THE TOP OF THE
TABLE.
THERE'S POOR COMMUNICATION WITH
A PATIENT IN AS DISCONCORDANT
RELATIONSHIP AND THERE'S NO
STATISTICALLY SIGNIFICANT AFFECT
OF THIS.
NOW THERE ARE THE SECOND MAJOR
OBJECTIVE.
WE'VE IDENTIFIED PHYSICIANS WHO
USE CONCORDANT VERSUS DISCORDANT
INFORMATION AND THERE'S
SOMETHING TO BE LEARNED FROM
THEIR CONCORDANCE ACROSS ALL
PATIENTS.
IMAGINE THESE PATIENTS EIGHT ARE
LOW HEALTH LITERACY AND FIVE ARE
HIGH AND PICTURE HERE BY THE
GROUPING OF PATIENTS BY THE BLUE
BOX.
THIS STRATEGY MIGHT BE CALLED A
TENDENCY TO ENGAGE IN UNIVERSAL
PRECAUTIONS OR BY PHYSICIANS
ALWAYS USING SIMPLER LANGUAGE TO
REDUCE LITERACY DEMAND OF THEIR
PATIENTS.
IN THIS AND THEY USE HIGH
COMPLEXITY LANGUAGE WITH HIGH
LITERACY PATIENTS.
THIS STRATEGY MIGHT BE CALLED A
TENDENCY TO ENGAGE IN UNIVERSAL
TAILORING WHERE PHYSICIANS MATCH
THEIR PATIENT'S LANGUAGE
ABILITIES.
AND WHAT WAY WE LIKE TO
DETERMINE IS HOW MUCH EACH
PHYSICIAN RESEMBLED AN IDEALIZED
VERSION.
FOR UNIVERSAL PRECAUTIONS IT
COULD BE REPRESENTED BY THE
VALUES IN THE FOUR DRELZ --
CELLS FOR THE 100% OF THE HIGH
HEALTH LITERACY PATIENTS THE
PHYSICIAN USES LOW COMPLEX
LANGUAGE.
AND THEY USE HIGH COMPLEXITY
WITH HIGH HEALTH LITERACY
PATIENTS.
AND NOW THIS IS BASED ON THEIR
ACTUAL ADAPTATION ACROSS THEIR
PATIENTS.
TAKE OUR UNIVERSAL TAILERING --
TAILORING WE CAN TAKE INTO
ACCOUNT THE OVERALL NUMBER OF
PATIENTS AND WE CAN CALL THE
RESULTS DISTRIBUTION OF VALUES
THE PHYSICIANS TAILORING
SIGNATURE.
ARE FOUR ELEMENTS THAT CAN BE
PLOTTED AS A HIGH DIMENSIONAL
POINT AND THE IDEALIZED GOLD
STANDARD ARE FOUR ELEMENT
VECTORS WITH THEIR OWN UNIQUE
LOCATION IN THE PLOT AND BY
COMPUTING THE DISTANCE BETWEEN
THE TAILORING SIGNATURE VECTOR
IN EACH IDEALIZED POINT WE CAN
QUANTIFY HOW CLOSE ANY PHYSICIAN
IS TO ANY IDEALIZED STRATEGY.
IN OTHER WORDS THEY CAN HAVE A
SCORE NOR FOR HOW MUCH THEY
RESEMBLE UNIVERSAL TAILORING OR
PRECAUTIONS STRATEGY.
THE SHORTER THE DISTANCES, THE
GREATER THE RESEMBLANCE.
AND PHYSICIANS ON THEIR
RESEMBLANCE SCORE FOR EACH
STRATEGY.
HERE'S THE FULL PLOT ORIENTED
BUT AGAIN TIME CONSTRAINTS LET'S
MOVE ON.
THESE ASSOCIATIONS BETWEEN
PHYSICIAN COMMUNICATION
STRATEGIES AND PATIENT
UNDERSTANDING WERE RELEVANT OR
ARE THERE ASSOCIATIONS.
SO FOR UNIVERSAL TAILORING OF
STRATEGY, YES.
THE ODDS RATIO INDICATES
PHYSICIANS WHO TEND MORE TOWARDS
UNIVERSAL TAILORING HAVE
PATIENTS REPORT BETTER
UNDERSTANDING.
AND THIS APPLIES TO BOTH HIGH
AND LOW HEALTH LITERACY
PATIENTS.
INTERESTINGLY, THE SAME WAS NOT
FOUND FOR PHYSICIANS WHO TEND
MORE TOWARDS A UNIVERSAL
PRECAUTION OF STRATEGY.
QUICKLY, I'LL GET TO THE LAST
BIG TAKE-HOME FINDING HERE.
SO WE KNOW THAT LANGUAGE
CONCORDANCE WITH A DOCTOR
MATTERS AND DOCTORS THEMSELVES
CAN VARY ON THEIR TAILORING
STRATEGIES.
DO THEY BENEFIT IN A CONCORDANT
SIGNATURE WITH MORE UNIVERSAL
PRECAUTIONS OR TAILORING.
WE FIND YES, THERE IS A BOOST
AND ADVANTAGE FOR UNIVERSAL
TAILORING AND FOR CERTAIN
PATIENTS.
THE ADHERENCE TO UNIVERSAL
TAILORING MAKES LITTLE
DIFFERENCE TO THE LOW HEALTH
LITERACY PATIENTS WHEN THEY'RE
DISCONCORDANT AND IS THE TYPE OF
PATIENT WHO SEEMS ATTUNED TO
THEIR PATIENT'S NEEDS AND
ABILITIES, THESE LOW-HEALTH
LITERACY PATIENTS REPORT
UNDERSTANDING SCORES AS HIGH AS
HIGH HEALTH LITERACY PATIENTS AN
CONCORDANT RELATIONSHIP.
AND DEAN CAN TAKE OVER.
WITH A RETURN ON INVESTMENT FOR
THE BOARD OF REGENTS THIS SO TO
DEVELOP AND VALIDATE MEASURES OF
PATIENT HEALTH LITERACY AND
PHYSICIAN LINGUISTIC COMPLEXITY
USING COMPUTATIONAL LINGUISTICS.
MOREOVER AND MORE IMPORTANTLY,
IT'S THE FIRST QUANTITATIVE
STUDY TO PROVIDE EVIDENCE THAT
PRECISION COMMUNICATION CAN
GENERATE BENEFITS IN HEALTH CARE
SETTINGS.
AS NICK JUST SHOWED, PHYSICIAN'S
ABILITY TO RECEIVE INFORMATION
AND ADAPT AND EXPRESSIVE SKILLS
INDIVIDUALLY AND IN COMBINATION
APPEARED TO INFLUENCE IN THIS
CASE PATIENTS UNDERSTANDING OF
HEALTH CARE INFORMATION
NECESSARY TO MANAGE THEIR
DIABETES.
PATIENTS WITH LOW HEALTH
LITERACY WERE ESPECIALLY
SENSITIVE TO THIS LINGUISTIC
MATCHING BUT PATIENTS OF LOW AND
HIGH HEALTH LITERACY PATIENTS
BENEFIT FROM PATIENTS WITH AN
ADAPTIVE LANGUAGE STYLE AND THE
COMBINATION OF LINGUISTIC
MATCHING AND ADAPTIVE LANGUAGE
STYLE APPEARS TO ELIMINATE
HEALTH LITERACY RELATED
DISPARITIES IN COMMUNICATION.
THIS SULGGESTS TO US THAT IN TH
INDEXES THAT NICK SHOWED EARLIER
PROMOTES SHARED MEANING AND CAN
REDUCE OR EVEN ELIMINATE
HEALTH-RELATED DISPARITIES.
SUGGESTING THE CONSTRUCT OF
PRECISION MEDICINE SHOULD
INCLUDE THE DOMAIN OF PRECISION
COMMUNICATION.
NOW, ONE OF THE IMPLICATIONS
HERE, THIS IS A NEW WORLD.
WE HAVE A WORLD IN WHICH MOST OF
US IN HEALTH CARE SETTINGS ARE
LOST IN TRANSLATION YET WE HAVE
A BURGEONING OF ARTIFICIAL
INTELLIGENCE TECHNIQUES THAT CAN
CREATE AND WRITE LANGUAGE IF
INFORMED PROPERLY AND A WORLD IN
WHICH FIVE OR 10 YEARS FROM NOW
COMMUNICATIONS FROM CLINICIANS
AND PATIENTS MAY BE INFORMED
SIGNIFICANTLY BY A.I.
WHILE THE IMMEDIATE IMPLICATIONS
IS TO GENERATE MEASURES IN AN
AUTOMATED AND RAPID FASHION HAS
SCALE TO IDENTIFY PATIENT IN
NEED OF ADDITIONAL COMMUNICATION
SUPPORT.
THIS HAS BEEN A SIGNIFICANT
BARRIER TO THE DEVELOPMENT OF
HEALTH CARE ORGANIZATIONS AND
EXECUTIVES REPEATEDLY ASKING
WELL, I DON'T KNOW WHO AMONG MY
PATIENTS HAS HEALTH LITERACY.
WE CAN POTENTIALLY RESOLVE THAT
PROBLEM.
THE SECOND IS THERE'S GREAT
POTENTIAL FOR NLP-BASED FEEDBACK
TO CLINICIANS IN ROUTINE HEALTH
CARE AS THEY'RE POSING
COMMUNICATION TO PATIENTS WITH
HIGH AND LOW LITERACY AND WE DID
A TRIAL TESTING THAT.
THE LONGER TERM IMPLICATIONS
HOWEVER, IS OUR WORK PROVIDES A
PROOF OF CONCEPT AND I HAVE TO
BELIEVE THIS IS WHY IT GOT
PUBLISHED IN SCIENCE BECAUSE
PAPERS IN HUMAN COMMUNICATION
DON'T TEND TO GET PUBLISHED IN
SCIENCE JOURNALS.
BUT THE PROOF OF CONCEPT THAT
PRECISION COMMUNICATION CAN BE
MEANINGFULLY DEFINED AND STUDIED
VIA ADVANCED METHODS AND THIS
CONCEPT PROVIDES A MAJOR
OPPORTUNITY FOR DISCOVERIES TO
ADVANCE HUMAN HEALTH AND THE TIP
OF THE ICEBERG.
ALL WE STUDIED WAS LINGUISTIC
COMPLEXITY BUT THERE'S A RANGE
OF COMMUNICATION ATTRIBUTES,
COMPREHENSIVENESS, EMOTION,
EMPATHY, COLLABORATION,
VALIDATION, TRUSTWORTHINESS,
ETCETERA THAT THEORETICALLY
COULD BE ANALYZED USING
TECHNIQUES SIMILAR TO WHAT WE
DEMONSTRATED HERE.
DOING SO WOULD ALLOW US TO
UNDERSTAND CERTAIN ELEMENTS AND
ATTRIBUTES OF EFFECTIVE
COMMUNICATION.
RIGHT NOW MOST OF WHAT WE THINK
WE KNOW ABOUT COMMUNICATION IS
BASED ON WELL, THAT MENTOR OF
MINE USED TO DO THAT AND IT
SEEMED TO WORK WELL OPPOSED TO
RIGOROUS SCIENCE.
FINALLY THIS SUGGESTS SCALABLE
INTERVENTIONS EVIDENCE BASED TO
ADVANCE THE EFFECTIVENESS OF
HEALTH CARE IN A MANNER THAT
PROVIDES PRECISION MEDICINE.
LASTLY WE WANT TO CLOSE WITH A
PROPOSAL FOR SEEING THE
POTENTIAL VALUE IN THE RESEARCH
WE UNDERTOOK IN THE LAST SIX
YEARS AND REALLY BELIEVE GIVEN
THE LANDSCAPE OF THE NIH AND HOW
LITTLE FUNDING HAS GONE INTO
UNDERSTANDING HUMAN INTERACTION
AND COMMUNICATION AS IT RELATES
TO TRANSLATIONAL MEDICINE, NLM
COULD BE A VERY IMPORTANT
LEADERSHIP ROLE IN BUILDING OUT
A PRECISION COMMUNICATION
RESEARCH AGENDA.
WITH THAT I'LL CLOSE.
I DON'T KNOW WHO TAKES IT FROM
HERE BUT AGAIN THANK YOU VERY
MUCH FOR THE PRIVILEGE OF
PRESENTING OUR NLM-FUNDED
RESEARCH TO THE BOARD OF REGENTS
.
>> THANK YOU FOR THE FASCINATING
WORK.
LOURDES YOU'RE ONE OF OUR
DISCUSSANTS AND CLAY, THE OTHER
DISCUSSANT HAD TO STEP AWAY BUT
WE HAVE OTHERS WHO CAN STEP IN.
>> IT'S A BRILLIANT
PRESENTATION.
QUITE FASCINATING.
ONE QUESTION I HAD IS YOU TALK
ABOUT HOW DO PATIENTS UNDERSTAND
THEIR DOCTORS AND I HAVE THE
REVERSE QUESTION HOW DO DOCTORS
UNDERSTAND PATIENTS?
SOMETIMES PATIENTS WILL TALK
ABOUT VERY CULTURALLY BOUND TYPE
OF ISSUES.
FOR EXAMPLE, THE EVIL EYE AND
THING THEY ATTRIBUTE ARE THE
CAUSES OF ILLNESS WHETHER IT'S
THEIR CHILDREN OR FAMILY AND I
WONDER WHEN PHYSICIANS ARE
FACING THAT KIND OF
COMMUNICATION IN WHAT WAYS MIGHT
THE PROGRAM BE ABLE TO ALLEVIATE
THAT OR PROVIDE SOME
UNDERSTANDING OF SOME OF THOSE
ISSUES AND HOW PHYSICIANS MAY
DEAL WITH THAT KIND OF THING?
THE PATIENT IS THE ONE WHO IS
NOT NECESSARILY ALWAYS THE
LITERACY PROBLEM BUT IT IS A
VERY CULTURALLY SPECIFIC BOUND
KIND OF BELIEF OR ATTITUDE THAT
IS BROUGHT TO THE TABLE.
>> CAN I TACKLE THAT, NICK?
>> I LOVE THIS BECAUSE IT GETS
TO THE CORE ISSUE OF SHARED
MEANING.
IT'S A BI-DIRECTIONAL SET OF
ARROWS.
I AM SURE THAT AS FREQUENT A
PROBLEM PATIENT MISUNDERSTANDING
IS OF DOCTORS'S COMMUNICATION SO
TOO IS THE DEGREE TO WHICH
PHYSICIANS MISUNDERSTAND THEIR
PATIENTS.
I WOULD ARGUE A SIGNIFICANT
MAJORITY OF THAT MISINFORMATION
HAS TO DO WITH PHYSICIAN'S
FAILURE TO EVEN ELICIT
COMMUNICATION FROM THEIR
PATIENTS LET ALONE RECEIVE IT
AND NOT UNDERSTAND IT AND THINK
THE PROBLEM RUNS DEEPER WHICH IS
WE INTERRUPT AFTER 11 SECONDS
AND YOU KNOW ALL THE RESEARCH
THERE.
PARTLY WHAT'S EXCITING ABOUT
WHAT NICK WAS ABLE TO DO WITH
THESE PHYSICIAN SIGNATURES IS TO
BE ABLE TO DEVELOP AN ARCHETYPE
A PHENOTYPE OF CLINICIANS THAT
APPEAR TO BE SKILLED IN THE
RECEIVING OF INFORMATION IN NOT
JUST THE SPEAKING BUT THE
SENSING AND THEN ADAPT
ACCORDINGLY TO TAILORED
COMMUNICATION.
I WOULD ARGUE THAT PROBABLY
THOSE COMBINATIONS THAT HAVE
THAT SIGNATURE, THAT SKILL ARE
ALSO GOING TO BE THOSE
PHYSICIANS THAT CAN LISTEN TO
THE WAYS IN WHICH PATIENTS ARE
FRAMING THEIR HEALTH PROBLEMS
AND TRY TO INTERPRET AND
REINTERPRET WAYS THAT GENERATE A
SENSE OF SHARED MEANING BUT
THOSE ARE THE RESEARCH QUESTIONS
WE CAN BEGIN TO BE EXPLORING AND
THAT PROBLEM YOU DESCRIBED IS
UBIQUITOUS.
IT COULD BE BECAUSE OF CULTURAL
REASONS OR PATIENTS DON'T KNOW
THE MEDICAL LINGO TO BE ABLE TO
SUCCINCTLY DESCRIBE THEIR
HISTORY.
THESE ARE SO-CALLED POOR
HISTORIANS.
THAT'S WHAT WE CALL THOSE
PATIENTS, THE POOR HISTORIAN.
WE PUT IT ON THEM AS THE
PROBLEM.
I THINK THIS IS A VERY BIG BLACK
BOX YOU ASKED ABOUT AND QUITE
AMENABLE TO THIS KIND OF
RESEARCH.
>> DID YOU WANT TO SPEAK TO
THAT.
>> WHAT WE BUILT AND SPEECH
NOTHING TO DO WITH SEMANTIC
CONTEXT.
WE WANT A SHARED MEANING AND
THESE SORT OF WAYS.
>> WHAT WE DID WAS THERE WAS NO
QUALITATIVE ANALYSIS WHATSOEVER.
THIS IS PROBABLY SCRATCHING THE
SURFACE OF THE KINDS OF
MISUNDERSTANDING AND
MISCOMMUNICATIONS THAT CAN
HAPPEN IN BOTH DIRECTIONS AND
WHY THIS CONCEPT I THINK OF
PRECISION COMMUNICATION IS SO
IMPORTANT.
THAT DEGREE OF MISACCURACY AND
YOU WANTED TO LAND AN AIRPLANE
IN CLEVELAND AIRPORT YOU
COULDN'T DO IT AND IN MEDICINE
WE TOLERATE IT WITH ALL THE
CONSEQUENCES THEREIN.
>> THANK YOU.
AND I HOPE WHAT WILL BE A QUICK
QUESTION.
I SAW YOU HAVE MULTIPLE RACE
ETHNICITY INCLUDED IN YOUR STUDY
AND ALSO I THINK I SAW SPANISH
AS WELL.
I'M WONDERING IF THIS A WHOLE
ALGORITHM THAT WORKS WELL ALSO
IN MULTIPLE LANGUAGES AND CAN BE
USED IN MULTIPLE SCENARIOS AND
WITH THE LANGUAGE TRANSLA
ISSUES AS THEY'RE THEIR OWN
SITUATION ITSELF.
>> RELATED YET DIFFERENT.
I CAN TALK ABOUT THE SAMPLE AND
NICK CAN TALK ABOUT THE METHOD
CHALLENGES.
THE SAMPLE WE DID NOT RESTRICT
THE SAMPLE ONLY TO ENGLISH
SPEAKERS.
HOWEVER, THE PATIENT PORTAL AT
THAT TIME UNDER STUDY WAS ONLY
AVAILABLE IN ENGLISH.
SO THIS IS REALLY ANOTHER
EXAMPLE OF HOW RACISM PLAYS OUT
IN MEDICINE AND ONLY OFFERED TO
PEOPLE WHO SPOKE ENGLISH.
WE DID DISCOVER HOWEVER, THAT
ABOUT 3% OF THE POPULATION
REPORTED HAVING LIMITED ENGLISH
PROFICIENCY.
AND MANY USED PROXIES TO WRITE
THEIR SECURE MESSAGES FOR THEM
AND WE DEVELOPED AN ALGORITHM TO
ELIMINATE THOSE TO NOT HAVE TO
CONTAMINATE THE SAMPLE WITH
PROXIES BECAUSE IT'S A WHOLE
OTHER ISSUE.
NOW, WE DID DISCOVER EARLIER ON
THAT A SMALL PROPORTION OF THIS
CORPUS OF LANGUAGE WAS ACTUALLY
WRITTEN IN SPANISH.
SPANISH-SPEAKING PATIENTS
WRITING TO THEIR
SPANISH-SPEAKING DOCTOR -- IT
HAPPENS ALL THE TIME TO ME ON
THE PATIENT PORTAL AND I RESPOND
IN SPANISH.
AND WE EXCLUDED THOSE MESSAGES
FROM THE CORPUS FOR THE REASONS
I THINK NICK IS GOING TO
DESCRIBE AS THE TALKS ABOUT THE
LANGUAGES.
>> THE LINGUISTIC FEATURES FROM
OTHER DATABASES AND THERE'S
MODELS TRAINED ON SPANISH TEXT
AND SO THIS IS A WHOLE NEW SET
OF INDEXES.
>> WE'RE RUNNING A FEW MINUTES
BEEN THE.
>> I'VE ARGUED WITH COLLEAGUES
ABOUT UNIVERSAL PRECAUTIONS
VERSUS TAILORED SO I'M GLAD TO
SEE THIS AND IT'S VERY EXCITING
AND I THINK WE PRIMARILY DO WORK
WITH INFO GRAPHICS AS ANOTHER
MODE OF COMMUNICATION AND I
OFTEN TALK ABOUT THAT FROM THE
PERSPECTIVE OF PRECISION
COMMUNICATION.
I THINK IT'S PROBABLY A BIGGER
RESEARCH AGENDA WITH DIFFERENT
TYPES OF TOOLS BUT THAT WOULD BE
VERY IMPORTANT FOR THE NLM AS
WELL.
I APPLAUD YOU FOR THE VERY
EXCITING WORK.
>> SORRY TO HAVE TO CUT THIS
SHORT BUT WE'RE RUNNING BEHIND
AND THANK YOU FOR A FASCINATING
PRESENTATION.
I APPRECIATE IT.
NEXT ITEM IS TO MOVE ON TO
REPORT PERFECT BRENT ON THE
REPORT FROM THE NOMINATING
COMMITTEE.
>> THANK YOU, NEAL.
I'M HAPPY TO GET MY FIVE MINUTES
OF BOARD OF REGENTS FAME ON MY
LAST DAY OF THE JOB.
GOOD AFTERNOON.
AS THE CHAIR OF THE NOMINATING
COMMITTEE FOR THE BOARD OF
REGENTS THE COMMITTEE MET MARCH
24 INCLUDING MYSELF, JOE FRANCIS
AND MARY TO CONSIDER THE
CANDIDATES FOR THE NEXT NLM
BOARD OF REGENTS CHAIR AND AS A
RESULT I'M PLEASED TO ANNOUNCE
WE EXTENDED AN INVITATION TO
DR. HEIDI REED AND THANK YOU FOR
AGREEING TO DO THIS AND AT THIS
POINT SOMEONE MAY KNOW BETTER
THAN I DO BUT I BELIEVE WE NEED
TO ASK THE CURRENT BOR CHAIR TO
CALL FOR A CONCURRENCE VOTE.
>> I'M NOT SURE THE PROTOCOL OR
WHAT I NEED TO DO BUT DELIGHTED
HEIDI WILL BE STEPPING IN THE
ROLE.
DO I NEED TO ASK FOR CONCURRENCE
OF MEMBERS?
>> YES, PLEASE.
I'D
>> I'D LIKE TO ASK FOR
CONCURRENCE FOR HEIDI REED TO
BECOME THE NEXT CHAIR OF BOARD
OF REGENTS.
>> I SHOULD ABSTAIN.
>> THANK YOU FOR YOUR SHOW OF
CONCURRENCE.
I THINK WE HAVE CONCURRED.
THANK YOU BRENT AND THE
NOMINATING COMMITTEE FOR YOUR
WORK ON THIS.
>> PLEASURE.
>> THANK YOU VERY MUCH HEIDI.
LOOKING FORWARD TO WORKING WITH
YOU.
>> THANKS, NEAL FOR DOING AN
OUTSTANDING JOB THIS PAST YEAR.
>> THANK YOU VERY MUCH.
DELIGHTED TO TURN THIS OVER TO
YOU AS WELL.
>> NEXT UP IS DR. JANE YE
CONCEPT CLEARANCE FOR REISSUING
RESEARCH GRANTS IN BIOMEDICAL
INFORMATICS AND DATA SCIENCE
DISCUSSION.
I DON'T KNOW IF WE NEED
PRELIMINARY ON THIS OR GO AHEAD.
>> DR. YE IS READY TO PRESENT.
>> GOOD AFTERNOON.
MY NAME IS JANE YE.
I'M A PROGRAM OFFICER AND
REPRESENT OUR GROUP FOR A
CONCEPT CLEARANCE FOR RE-ISSUE
BEING NLM RESEARCH GRANTS IN
BIOMEDICAL INFORMATICS AND DATA
SCIENCE FROM THE OPPORTUNITY
ANNOUNCEMENT.
THE NLM RESEARCH GRANTS IN
BIOMEDICAL INFORMATICS AND DATA
SCIENCE FUNDING OPPORTUNITY
ANNOUNCEMENT FOA HAS SUPPORTED
RESEARCH AND DEVELOPMENT IN
BIOMEDICAL INFORMATICS AND DATA
SCIENCE SINCE THE INCEPTION IN
2013.
THE FOA HAS SERVED AS THE
PRIMARY FUNDING PROJECT FOR
INVESTIGATOR INITIATED PROJECTS
AND APPLICATIONS UNDER THIS FOA
WERE AUTOMATICALLY ASSIGNED TO
NLM.
THIS WAS AN INVESTIGATOR WHO
PREFERRED NLM TO BE THE FUNDING
INSTITUTE.
APPLICATION UNDER THE FOA WERE
REVIEWED BY NLM BIOMEDICAL
INFORMATICS LIBRARY AND
COMMITTEE WITH BALANCED EXPERT
IN INFORMATICS AND DATA SCIENCE
AND APPLICATION DOMAINS.
THIS WAS ALSO PREFERRED BY MOST
OF OUR INVESTIGATORS WHO
SOMETIMES COMPLAINED ABOUT THE
ABSENCE OR INSUFFICIENT
EXPERTISE IN SOME OF THE CSR
STUDY SESSIONS.
BECAUSE OF THESE REASONS, THE
FOA RECEIVED HIGHER NUMBER OF
APPLICATIONS.
NLM ACCEPTED THESE APPLICATION
THROUGH THE NLM FOA AND ALSO NIH
PARENT FUNDING OPPORTUNITY
ANNOUNCEMENT.
THIS SLIDE JUST SHOWED THE
NUMBER OF APPLICATIONS RECEIVED
AND FUNDED BETWEEN MAY 2019 AND
JANUARY TO COUNCIL ROUNDS.
THE TOP TWO LINES REPRESENT
APPLICATION RECEIVED WITH BLUE
INDICATING THE NUMBER OF NLM AND
THE APPLICATION UNDER NLM FOA
AND ALSO THE RED LINE FOR NIH
FOA.
THE BOTTOM TWO LINES ARE FUNDED
GRANTS WITH THE GREEN BEING NLM
FOA FUNDED GRANTS AND THE PURPLE
FOR NIH FOA GRANTS.
AS YOU AND SEE WE RECEIVED MORE
APPLICATIONS AND FUNDED MORE
GRANTS UNDER THE NLM FUNDING
OPPORTUNITY ANNOUNCEMENT.
THE SCOPE OF THE FOA APPROACHES
DEVELOPMENT IN APPLICATION
DOMAINS INCLUDING CLINIC AND
PUBLIC HEALTH, INFORMATICS AND
TRANSLATION AL INFORMATICS AND
CONSUMER INFORMATICS AND THIS
SHOWS THE INVESTMENT DOMAIN IN
THE FAST FIVE YEARS.
THE CLINICAL INFORMATIC
PORTFOLIO IS USUALLY THE BIGGEST
INVESTMENT CATEGORY AMONG
OTHERS.
AND THE FOA SUPPORTS A RANGE OF
RESEARCH PROJECTS IN AREAS SUCH
AS APPLYING MACHINE LEARNING TO
MODEL AND UNDERSTAND COMPLEX
DISEASES, BIOMARKER DISCOVERY
THROUGH THE INTEGRATION OF OMICS
AND EHR DATA, EX TRACTING AND
ANALYZING INFORMATION FROM EHR
DATA FOR DECISION MAKING,
PROTECTING CONFIDENTIALITY OF
PERSONAL HEALTH INFORMATION,
MANAGEMENT OF INFORMATION DURING
DISASTERS.
WE PLACED PRIORITY ON RESEARCH
THAT WAS NOVEL, SIGNIFICANT AND
OF HIGH IMPACT.
OVER THE YEARS, WE HAVE
SUPPORTED EARLY-STAGE
INVESTIGATOR TO OBTAIN THEIR
FIRST RO1 GRANTS TO ESTABLISH
THEIR INDEPENDENT RESEARCH
CAREER.
WE ALSO SUPPORTED INVESTIGATORS
IN STATES THAT HISTORICALLY HAVE
HAD LOW LEVEL OF NIH FUNDING
RESEARCHERS FUNDED UNDER THIS
FOA PUBLISHED THEIR RESEARCH
FINDINGS IN SCIENTIFIC JOURNALS,
DISSEMINATED TOOLS AND THE
RESOURCES IT GENERATES TO THE
RESEARCH COMMUNITY AND HAVE BEEN
RECOGNIZED FOR PRESTIGIOUS
AWARDS SUCH AS THE PRESIDENTIAL
EARLY CAREER AWARDS FOR
SCIENTISTS AND ENGINEERS FOR
THEIR GROUNDBREAKING RESEARCH ON
THE GLOBAL IMPACT OF CLIMATE
CHANGE ON INFECTIOUS DISEASE AS
WELL AS SINGLE CELL TECHNOLOGY
ALLOWING INVESTIGATE OF HET
HETEROGENEITY AT UNPRECEDENTED
LEVEL.
SUSTAIN RESEARCH EFFORTS WILL BE
NECESSARY TO IDENTIFY AND PURSUE
THE INNOVATIVE APPROACH THAT
ADVANCE THE FIELD OF INFORMATICS
AND DATA SCIENCE AND HAVE THE
CAPACITY TO IMPROVE HUMAN
HEALTH.
WED LIKE TO CONTINUE SUCCESSFUL
RO1 FUNDING GRANT AND FUTURE
EFFORTS WILL BE METHODOLOGY AND
DEVELOPMENT AND EVALUATION THAT
FOSTER DATA-DRIVEN DISCOVERY
AND WANT TO EMPHASIZE
GENERALIZABLE APPROACH FOR DATA
SETS TO VALIDATE PROPOSED MODELS
AND METHODS AND WE ANTICIPATE TO
PUBLISH THE FOA IN SEPTEMBER
2022.
WE WILL FOLLOW NIH STANDARD
RESET DATES THREE TIMES A YEAR.
APPLICATION BUDGETS WILL BE
ELIMINATED TO 250K PER YEAR IN
DIRECT COSTS WITH THE MAXIMUM
PROJECT PERIOD OF FOUR YEARS AND
THE APPLICATION WILL BE REVIEWED
BY THE INFORMATICS LIBRARY AND
DATA SCIENCE REVIEW COMMITTEE.
WITH THAT I WILL STOP HERE AND
BE HAPPY TO ANSWER ANY
QUESTIONS.
THANK YOU
>> THANK YOU, DR. YE.
QUESTIONS, COMMENTS FROM THE
BOARD ABOUT CONTINUING TO
RE-ISSUE THIS PROGRAM ALSO I SEE
RICHARD HAS JOINED US TOO AND IS
AVAILABLE FOR QUESTIONS OR
COMMENTS.
IT'S HELPFUL TO SEE THE
DIFFERENCE IN THE AVAILABILITY
OF THE NLM PROGRAM COMPARED TO
THE NIH PROGRAM OVERALL
INDICATING HOW IMPORTANT IT IS
RELATIVELY TO CONTINUE.
ANYTHING ELSE YOU'D LIKE TO ADD?
I DON'T SEE ANY COMMENTS OR
QUESTIONS.
>> THANKS, JANE FOR THE
PRESENTATION.
THIS IS THE WORKHORSE FOR NLM
AND A PROGRAM FUNCTIONING WELL
SO HOPE TO RELEASE IT AGAIN FOR
ANOTHER THREE-YEAR FOA.
NEAL, IF YOU'D LEAD US IN A
CONCURRENCE VOTE.
>> THE PROPOSAL IS TO RE-ISSUE
THE FUNDING OPPORTUNITY
ANNOUNCEMENT FOR BIOMEDICAL DATA
SCIENCE AND INFORMATICS AWARDS.
MAY I HAVE A SHOW OF CONCURRENCE
FROM THE BOARD FOR THIS
CONTINUATION ANY NON
CONCORDANCE?
IT'S CONCURRED BY THE BOARD.
>> A FEW MINUTES EARLY BUT I CAN
TURN IT BACK TO YOU, PATTI.
>> THIS IS A PLEASANT MOMENT AND
I'M HERE TO ANNOUNCE TWO SETS OF
AWARDS WE'LL BE PROVIDING.
>> I'M NOT SURE ANY OF OUR
AWARDEES ARE IN THE ROOM RIGHT
NOW AND SO I'M GOING TO BE
DESCRIBING THIS BUT WE'LL ENGAGE
THEM WITH THE CITATIONS WE'RE
GIVING OUT NOW.
THE RODGERS AWARD IS THE FIRST
TO BE GIVEN.
IT WAS ESTABLISHED IN 1989 BY
THE DIRECTOR OF THE NATIONAL
LIBRARY OF MEDICINE.
THE PURPOSE IS TO RECOGNIZE
EMPLOYEES WHO MADE A SIGNIFICANT
CONTRIBUTION TO OUR FUNDAMENTAL
OPERAT
OPERATIONS OR AND THOSE WERE
PREVIOUSLY EMPLOYED TO 2021.
THIS YEAR I'M PLEASED TO PRESENT
THE AWARD TO TWO RECIPIENTS.
THE FIRST GOING TO MR. ALEXANDER
ATASHYN AND HE'S BEING
RECOGNIZED FOR CONCEIVING AND
DEVELOPING A NEW METHOD TO
IDENTIFY CONTAMINATE SEQUENCES
IN GEN BANK GENOME SUBMISSIONS
WITH UNPARALLELED SENSITIVITY
AND PERFORMANCE.
THERE'S A CRITICAL NEED TO
IDENTIFY WHEN A GENOME CONTAINS
EXTRA SEQUENCES FROM A
CONTAMINANT ORGANISM WHICH CAN
RESULT IN ERRONEOUS DATA.
HIS NOVEL METHOD HAS ROBUST DATA
AND ANALYSES THAT CAN BE DONE IN
MINUTES VERSUS DAYS.
THIS TECHNICAL SKILL RESULTED IN
THE STEP FORWARD TO PROVIDE THE
QUALITY OF SEQUENCE ARCHIVES
GREATLY IMPROVING AND RESULTING
IN SUBSTANTIALLY AND MORE
EFFECTIVE NATIONAL LIBRARY OF
MEDICINE PROGRAM.
CONGRATULATIONS.
WE'RE ALSO PRESENTING THE FRANK
B RODGERS AWARD TO MS. TAYLOR
WITH THE MED LAR OF THE BIBLO
GRAPHIC DIVISION AND IMPROVING
THE NIH COMMON DATA ELEMENTS
REP
REPOSI
REPOSITORY.
STARTING WITH A USER ASSESSMENT
HES IMPROVED AND ADVOCATED FOR
THE CDE-R INCLUDING SUPPORTING
FUNDS FROM THE NIH.
HER EFFORTS HAVE A REDESIGN OF
THE SITE AND NEW TRAINING AND
EDUCATIONAL MATERIALS.
UNDER HER MANAGEMENT, PATIENTS
HAVE INCREASED NEARLY 40% FROM
FISCAL YEAR '19 TO FISCAL YEAR
'21.
HER CONTRIBUTIONS HAVE
POSITIVELY IMPACT THE VISIBILITY
AND USAGE OF THE CDE-R.
HER ACCOMPLISHMENTS IMPROVE AN
IMPORTANT NLM SERVICE AND A WANT
TAKE A MOMENT TO REMIND YOU PART
OF THE WAY NIH SUPPORTS RIGOR,
REPRODUCIBILITY AND RESEARCH IS
ENSURING THE QUALITY AND
INTEROPERABILITY OF DATA HAVING
COMMON DATA ELEMENTS AVAILABLE
IS ESSENTIAL AND HER WORK HAS
MADE THE COMMON DATA ELEMENTS
ACCESSIBLE, REVIEWED AND
AVAILABLE IN A HUMAN AND MACHINE
READABLE FASHION AND
CONGRATULATIONS AND MY PERSONAL
THANKS TO THE TWO OF YOU.
I'M PLEASED FOR THE NLM
DIRECTOR'S AWARD.
IT'S AN AWARD FROM THE NATIONAL
MEDICINE DIRECTOR TO ACKNOWLEDGE
THE WORK OF EMPLOYEES WHO MADE
EXCEPTIONAL CONTRIBUTIONS AND
THEY MUST HAVE TWO YEARS OF
SERVICE WITH THE NLM WHO MERIT
SPECIAL RECOGNITION FOR
OUTSTANDING AND CLEARLY
ACCESSIBLE SERVICES IN THE
ADVANCEMENT OF THE LIBRARY'S
MISSION.
NOMINEES ARE NOMINATED BY WORK
COLLEAGUES AND SUPERVISORS.
I'M PLEASED TO PRESENT THREE
AWARDS.
THE FIRST IS TO MR. FISTER.
HE'S A PROGRAM SPECIALIST IN THE
OFFICE OF THE DIRECTOR AND
SUPPORTS THE WORK THAT I DO AND
ESTABLISHING THE STRUCTURE AND
OPERATIONS OF OUR SCIENTIFIC
DIRECTOR'S OFFICE FOR THE
INTERMURAL RESEARCH PROGRAM AND
THE BROAD KNOWLEDGE OF THE NLM
AND NIH ADMINISTRATIVE AND
BUDGETARY PROCEDURES HAS BEEN
INDISPENSABLE AND IN ADDITION TO
PROVIDING GUIDANCE, HE
CONTRIBUTES TO NEW IDEAS SUCH AS
THE FIRST SHARE POINT SITE FOR
THE SCIENTIFIC DIRECTOR'S OFFICE
IMPORTANT TO STORE AND SHARE
CRITICAL DOCUMENTS.
MR. FISTER COLLABORATES WITH
TEAMS ACROSS THE NLM SEAMLESSLY
WORKING TO COORDINATE TASKS AND
BRIDGING CROSS-CUTTING AREAS
WHILE KEEPING THE BIG PICTURE IN
MIND AND HAS BEEN CRUCIAL IN
ADVANCING THE NLM GOAL OF ONE
INTRAMURAL RESEARCH PROGRAM
WITHIN ONE NLM.
I MUST SAY I DID NOT NOMINATE
MR. FISTER BUT DELIGHTED TO SEE
HIS NOMINATION.
AND NEXT IS MS. TUNCER AND BEING
RECOGNIZED FOR THEIR EXCEPTIONAL
CONTRIBUTIONS IN PUBLIC AFFAIRS
IN MEETING THE NLM PUBLIC MEDIA
FAIRS TEAM.
SHE WORKS CLOSELY WITH
LEADERSHIP AND STAFF ON
SENSITIVE AND TIMELY MEDIA OF
THE REQUESTS FOR CONSULTATION
AND LED A TEAM THAT FIELDED OVER
90 MEDIA REQUESTS DURING THE
FIRST THREE MONTHS OF THE
PANDEMIC REQUIRING TIMELY
COORDINATION ACROSS THE NLM, NIH
AND THE HHS.
SHE'S ALSO SUPPORTS THE
PRODUCTION OF THE DIRECTOR'S
BLOG MUSINGS FROM THE MEZZANINE
AND HAS SEEN AN INCREASE IN
SUBSCRIPTIONS.
SHE ADVANCED THE ENGAGEMENT AND
THE CRAFTING OF COMMUNICATION
THAT SHOWCASE THE NUMEROUS
SERVICES THAT SUPPORT THAT
DISCOVERY.
AND LASTLY TO MS. ZARINGHALAM
THE OPEN SCIENCE OFFICER WITNESS
THE OFFICE OF STRATEGIC
INITIATIVES ALSO LOCATED IN THE
OFFICE OF THE DIRECTOR.
SHE'S BEEN RECOGNIZED FOR HER
LEADERSHIP IN CRUCIAL
ADVANCEMENT OF DIVERSITY,
EQUITY, INCLUSION AND
ACCESSIBILITY ACROSS THE NLM AND
NIH AND BEYOND.
SHE SERVES AS THE REPRESENT FOR
THE UNITE COMMITTEE WHICH
PROMOTES WORKFORCE DIVERSITY
ACROSS THE NIH.
IN THIS ROLE, SHE LEADS THE
DEVELOPMENT OF RECOMMENDATIONS
FOR NIH POLICIES AND PROGRAMS
SEVERAL OF WHICH ARE ALREADY
BEING IMPLEMENTED.
SHE ALSO OVERSEES THE NATIONAL
LIBRARY OF MEDICINE'S EFFORT TO
DEVELOP THE RACIAL AND ETHNIC
EQUITY PLAN TO IMPROVE THE
INTERNAL CULTURE OF THE NATIONAL
LIBRARY OF MEDICINE.
SHE HELPED TO ESTABLISH THE NLM
ANNUAL LECTURE ON SCIENCE,
TECHNOLOGY AND SOCIETY TO RAISE
AWARENESS OF SOCIETAL ETHICAL
IMPLICATIONS IN THE CONDUCT OF
RESEARCH.
HER CONTRIBUTIONS HAVE BEEN
CRITICAL TO ENSURING NLM
ADVANCES IN ITS STRATEGIC
OBJECTIVES TO INCREASE WORKFORCE
DIVERSITY WHILE ADVANCING ROBUST
AND ETHICAL RESEARCH AND
FOSTERING TRUST IN THE NLM
PRODUCTS AND RESEARCH.
MY CONGRATULATIONS TO MY
COLLEAGUES, MR. FISTER, MS.
MUNCER AND MS. ZARINGHALAM.
NEAL, I BELIEVE WE'RE READY TO
MOVE INTO CLOSED SESSION.