>>WELCOME, EVERYONE TO OUR NLM
BOARD MEETING.
WE ARE--I WANT TO REMIND
EVERYONE THAT THE MEETING IS
BEING VIDEOCAST TO THE PUBLIC
AND WE HAVE A FEW ANNOUNCEMENTS
TO GET US STARTED SO OUR 2022
NEW BOARD MEMBERS, DR. ANDREW
CLARK, DR. MITCHELL CAT'RE CATS
AND DR. PHIL EPIGENETIC WALKER
HAVE BEEN APPROVED BY THE
DEPARTMENT AND WILL BE OFFICIAL
MEMBERS BY THE SEPTEMBER MEETING
SO THEY'RE ATTENDING THIS
CONSULTANTS AT THIS MEETING.
WE ALSO HAVE NEW ALTERNATE
EXOFICIO MEMBERS SO DRS. OLSON
WITH THE U.S. NAVY IS NOW
JOINING US AND WE ALSO HAVE KARL
JOSEPH STERBIS, THE DIRECTOR OF
THE ARMY MEDICAL EDUCATION
DIRECTORATE OF THE U.S. ARMY SO
WELCOME AND THEN WE HAVE 2 2023
NEW BOARD NOMINEES, PENDING HHS
APPROVAL WHO ARE ATTENDING THESE
CONSULTANTS, WE HAVE DR. ANN
KD--SALLY LAWEDDER DALE AT THE
NEAREST OF MEDICAL COLLEGE
WISCONSIN AND DR. PROFESSOR
DEPARTMENT OF NURSING AT YALE
UNIVERSITY SCHOOL OF NURSING.
I WANT TO WELCOME EVERYONE TO
OUR BOARD MEETING TODAY AND I
THEN I WILL TURN IT OVER TO THE
OFFICE OF THE SURGEON GENERAL SO
WE DELIGHTED TO HAVE TAG KEHANO,
WHO IS WITH THE OFFICE OF U.S.
SURGEON GENERAL AND DEVELOPMENT
OF THE SURGEON GENERAL'S NEW
INITIATIVE TO ISOLATE AND
LONELINESS AS ISSUES OF SOCIAL
CONCERN AND ADVANCE SOCIAL
CONNECTION ACROSS THE COUNTRY.
SO WE'RE DELIGHTED TO WELCOME
YOU TO GIVE A REPORT, THANK YOU.
>>HI, CAN EVERYONE HEAR ME?
>>YES.
>>THANK YOU FOR THE
INTRODUCTION, I'M
[INDISCERNIBLE], I'M ON THE
SCIENCE AND OFFICE POLICY TEAM
IN THE OFFICE OF THE SURGEON
GENERAL, I WANT TO APOLOGIZE FOR
THE DOCTOR NOT BEING ABLE TO BE
HERE TODAY BUT WANTED TO EXPRESS
GRATITUTE TO MACHINES OF THE
BOARD AND EVERYONE FOR THE
INVITATION TO SHARE OUR WORK AND
YOUR PARTNERSHIP, IT'S AN HONOR
FOR US TO JOIN YOU AGAIN.
SO WITH THAT I WILL GET STARTED
HERE.
SO JUST TO OVERVIEW FOR TODAY'S
DISCUSSION, WE'RE GOING TO
OVERVIEW OUR QUARTER 1
ACTIVITIES IN THE--OUR NEW
SURGEON GENERAL ADVISORY ON THE
HEALING EFFECTINGS OF THE SOCIAL
JUSTICE COMMUNITY.
OURP CUMMING OSG PROJECTS AND
ANSWER ANY QUESTIONS YOU ALL MAY
HAVE.
JUST TO START, I WOULD LIKE TO
OVERVIEW THE OFFICE OF THE
SURGEON GENERAL'S MISSION AS WE
DEFINE IT.
SO OUR MISSION IS TO PROTECT,
PROMOTE AND ADVANCE THE HEALTH
AND SAFETY OF OUR NATION.
WE AIM TO HELP EVERYONE
UNDERSTAND THESE IMPORTANT
ISSUES AND HOW WE CAN WORK
TOGETHER TO TAKE ACTION.
IN QUARTER 1, 2023, DR. MURPHY
CONTINUED IN LEADERSHIP AT THE
U.S. PUBLIC HEALTH SERVICE CORE
WITH ADMIRAL LEVINE, TODAY HE IS
AT THE 56 SCIENTIFIC AND
TRAINING SYMPOSIUM IN ARIZONA.
THE PUBLIC HEALTH REPORTS WHICH
IS THE JOURNAL OF THE OFFICE OF
THE SURGEON GENERAL IS NOW IS AN
IMPACT FACTOR 3.1, HIGHEST EVER
AND CONTINUES TO GO UP EVERY
YEAR, DR. MURPHY HOSTS A
BI-WEEKLY PODCAST CALLED HOUSE
CALLS WHICH OFFERS MENTAL HEALTH
AND WELL BEING, ADVICE AND
SUPPORT WITH LEADING EXPERTS IN
THE FIELD.
IN 2021, OUR OFFICE PUT OUT
PROTECTD BEING YOUTH AND MENTAL
HEALTH ADVISORY, AND IN 2022 WE
PUT OUT DOCUMENTS ON WORKER WELL
BEING AND HEALTH WORKER WELL
BEING.
ALL OF THESE INITIATIVES WE
CONTINUE TO HAVE ENGAGEMENTS AND
OUTREACH EVENTS TO BOTH SUPPORT
THE INITIATIVES WE OUTLINE IN
THE ADVISORY AND GOALS, AS WELL
ENGAGEMENT STAKEHOLDERS, ALSO
THIS PAST WEEK, AS I MENTIONED,
WE PUT OUT OUR NEWEST ADVISORY
ON THE NEWEST EFFECTS OF SOCIAL
HEALING IN THE COMMUNITY WHICH I
WILL GET INTO NOW.
SO THE NEWEST ADVISORY ON THE
HEALING EFFECTS OF SOCIAL
CONNECTION IN THE COMMUNITY.
SO WHY THIS NOW?
THE PANDEMIC CREATED AN
UNPRECEDENTED SHARED EXPERIENCE
WHERE MANY AMERICANS WERE
DISCONNECTED FROM LOVED 1S AND
IN A NEW WAY AND FELT THE RESULT
EPI-BLAST OF METROPOLITANNAL
PHYSICAL AND HEGHT CONSEQUENCES
IN THEIR LIVES, BUT THIS HAS
LONG BEEN AN UNDERLYING HEALTH
CRISIS THAT HARMS PUBLIC HEALTH.
SO BEFORE GETTING INTO THE
DETAILS OF THE ADVISORY, I WANT
THANK ALL THE PARTNERS THAT HAVE
BEEN INVOLVED IN THIS.
WE WORKED IN COLLABORATION WITH
STAKEHOLDERS ACROSS HHS AND U.S.
GOVERNMENT MORE BROADLY,
ACADEMICS, PARTNERS, STATE AND
LOCAL GOVERNMENT AND WANT TO
THANK EVERYONE AND ACKNOWLEDGE
THEM, ACKNOWLEDGE ALL OF YOU FOR
BEING A PART OF THIS WORK.
WE ALL WANT TO THANK THE SUBJECT
MATTER EXPERT INVOLVED
DR. JULIAN [INDISCERNIBLE] OF
BRIGHAM YOUNG UNIVERSITY AND THE
GLOBAL [INDISCERNIBLE]
CONNECTION.
SO LONELINESS AND ISOLATION ARE
A GROWING UPDEMMIC IN THE UNITED
STATES.
LONELINESS AND ISOLATION ARE
WIDE SPREAD AND FUNDAMENTALLY
HARM OUR MENTAL AND PHYSICAL
HEALTH.
BEFORE THE PAN DEMI 1-2 ADULTS
REPORT EXPERIENCING MEASURE
LEVELS OF LONELINESS, MAKING IT
MORE WIDE SPREAD THAN OTHER
HEALTH ISSUES OF THE DAY
INCLUDING OBESITY, DIABETES AND
SMOKING.
SMOKING AS BEEN ON THE DECLINE
FOR DECADES.
IN 2021 ALMOST HALF OF AMERICANS
REPORT HAVING 3 OR FEWER CLOSE
FRIENDS, COMPARED TO 27%
REPORTING THE SAME IN 1990.
RECENT STUDIES SHOW THAT SOCIAL
ISOLATION ARE PARTICULARLY A
PROBLEM AMONG YOUTH.
THIS RISE HAS AN IMPACT ON OUR
HEALTH.
POOR OR INSUFFICIENT SOCIAL
CONNECTION IS ASSOCIATED WITH
INCREASED RISK OF DISEASE
INCLUDING A 29% INCREASED RISK
OF HEART DISEASE AND A 32
INCREASE RISK OF STROKE.
CHRONIC LONELINESS CAN INCREASE
THE RISK OF DEVELOPING DEMENTIA
BY APPROXIMATELY 50% IN OLDER
ADULTS EVEN AFTER CONTROLLING
FOR DEMOGRAPHICS AND HEALTH
STATUS.
LACKING CONNECTION CAN INCREASE
THE RISK FOR PREMATURE DEATH TO
MORE THAN 60%.
PUT SIMPLY THIS SOCIAL
DISCONNECTION INCREASES THE RISK
OF PREMA MIEWR DEATH COMPARABLES
TO SMOKING DAILY.
NOW WE KNOW THE HEGHT IMPACTS
BUT WE ALSO KNOW THAT SOCIAL
CONNECTION CAN BE A HEALING
FORCE FOR PEOPLE, COMMUNITY'S
RESIDENTS ARE MORE CONNECTED
WITH 1 ANOTHER IF THEY'RE BETTER
ON SEVERAL MEASURES OF
POPULATION HEALTH, COMMUNITY
RESILIENCE, NATIONAL HAZARDS
STRIKE, COMMUNITY SAFETY AND
ECONOMIC PROSPERITY AND CIVIC
INGAUGEMENT.
IN THE ADVISORY OF THE SURGEON
GENERAL LAYS OUT A FRAMEWORK FOR
NATIONAL STRATEGY TO ADVANCE
SOCIAL CONNECTION ELEVATING THE
DIFFERENT TOOLS AND WAYS THAT WE
AS A NATION CAN APPROACH THIS.
I WILL HIGHLIGHT FOR YOU ALL,
NUMBER 4 AND NUMBER 5,
PERFORMING DIGITAL ENVIRONMENTS
THINKING THROUGH REQUIRING DATA
TRANSPARENCY, ESTABLISHING AND
IMPLEMENTING SAFETY STANT ARDS
AND SUPPORTING DEVELOPMENT OF
PRO PILLARS OF KNOWLEDGE.
AND NUMBER 5 DEEPEN OUR
KNOWLEDGE, INCREASING PUBLIC
AWARENESS AND ACCELERATE
RESEARCH FUNDING, WE THINK
THERE'S DEEP OPPORTUNITIES FOR
CONNECTION IN THESE ISSUES IN
COLLABORATION.
OR OR THE PAST COUPLE WEEKS,
DR. MURPHY HAS DONE A NUMBER OF
ENGAGEMENT AND PRESS EVENTS, WE
HAD AN OPED IN THE NEW YORK
TIMES, WE TALKED TO OPRAH DR.
PHIL, WE'VE BEEN HAPPY WITH THE
RESPONSES WE GOT ACROSS THE
COUNTRY AND WE'RE EXCITED TO
CONTINUE TO REACH OUT THE PEOPLE
AND SHARE THIS MESSAGE EMPLOY SO
WHAT'S NEXT IN 2023, WE HAVE
CONTINUED COLLABORATION ACROSS
HHS AND U.S. GOVERNMENT WE'RE
ENGAGING WITH OUR YOUTH MENTAL
EXPHELGT WE HAVE AN UPCOMING
TOBACCO REPORT.
DR. MURPHY CONTINUES TO LEAD THE
U.S. PUBLIC HEALTH SERVICE,
PUBLIC HEALTH REPORTS CONTINUES
TO PUBLISH IMPORTANT ARTICLES IF
ARE PUBLIC HEALTH PROFESSIONALS,
DR. MURPHY'S BEEN APPOINTED TO
THE W. H. O. EXECUTIVE BOARD AND
WE CONTINUE TO ENGAGE O OUR
PREVIOUS WORK WITH WORKPLACE
WELL BEING AS WELL AS HEALTH
WORKER WELL BEING IN YOUTH
MENTAL HEALTH.
I WOULD LIKE HERE TO HIGHLIGHT
OPPORTUNITIES AND AREAS FOR
ACTION ALL YOU SPECIFICALLY
AROUND DISSEMINATION OF OUR
PRIORITIES AND APPROACHES OF
FURTHER RESEARCH INTO THIS WORK.
AND REALLY INVITE ANY FEEDBACK
YOU ALL HAVE SO WITH THAT I
WOULD REAL LIE LIKE TO TAKE THE
TIME TO THANK YOU ALL FOR ALL
YOUR ENGAGEMENT AND ELEVATING OF
THIS WORK WE REALLY APPRECIATE
THE SUPPORT AND THE RESOURCES
YOU ALL PROVIDE.
SO WITH THAT, I WILL PAUSE FOR
ANY QUESTIONS YOU HAVE.
>>GREAT, THANK YOU.
HAPPY TO OPEN IT UP FOR
QUESTIONS FOR ANYONE FOR TAG.
TAG, YOU MENTIONED WANTING TO
ENGAGE ON DISSEMINATION AND
RESEARCH.
ARE THERE SPECIFIC WAYS THAT
RESEARCH AROUND THE GUIDANCE AND
APPROACHES YOU PUT OUT ARE
CONDUCTED TO GET FEEDBACK AND
ITERATE--
>>CAN YOU SAY THAT 1 MORE TIME,
I WANT TO MAKE SURE I'M FULLY
UNDERSTANDING?
>>JUST THE QUESTION OF AS YOU
PUT OUT MATERIALS AND AND EFFORT
JUST TRYING TO STUDY THE
OUTCOMES OR IMPROVEMENTS OVER
TIME ENGAGEMENT WITH WITH THE
GUIDANCE YOU'RE PUTTING OUT, THE
MATERIALS YOU'RE PUTTING OUT.
>>YEAH, WE DEFINITELY--WE SEE
THIS ADVISORY AS AN OPPORTUNITY
TO ELEVATE WHAT THE RESEARCH IS
AS WELL AS HIGHLIGHT THE NEED
FOR FURTHER RESEARCH.
WE THINK THERE NEEDS TO BE
FURTHER ENGAGEMENT BY GOVERNMENT
IN STAKEHOLDERS INTO BOTH
FUNDING THIS RESEARCH AS WELL AS
COMMUNICATING IT INTO EFFECTIVE
POLICIES.
I HOPE THAT--I DON'T KNOW IF
THAT ANSWERS THE QUESTION FULLY,
BUT WE'RE--I THINK ANOTHER WAY
OF FRAMING THIS IS WE ARE
HIGHLIGHTING WHAT IS AN ONGOING
CRISIS BUT ALSO THIS IS KIND OF
JUST THE BEGINNING OF WHAT
ACCOUNTED BE A NATIONAL PUSH FOR
ADDRESSING THIS PROBLEM OVERALL
AND WE'RE EXCITED FOR THE STEPS
DOWN THE ROAD THAT MAY BE
SPARKED BY THIS IN COLLABORATING
WITH OTHERS.
>>GREAT.
THANK YOU.
PATTY?
>>THANKS VERY MUCH AND TAG,
THANK YOU VERY MUCH FOR THE
PRESENTATION.
WE'VE BEEN HEARING A LOT IN THE
POPULAR PRESS LATELY ABOUT THE
CONGRESS' INTEREST IN PUTTING
SOME LEGISLATIVE GUIDANCE FILES
AROUND SOCIAL MEDIA AND I
WONDERED IF THE SURGEON
GENERAL'S OFFICE IS HAVING ANY
ENGAGEMENT WITH THAT AND HAS ANY
POSITIONS THAT WE SHOULD BE
UNDERSTANDING?
THANK YOU.
>>YEAH, I CAN'T SPEAK TO AN
ENGAGEMENT THAT GOING ON ON THAT
JUST THAT AS WE HIGHLIGHT AN
ADVISORY THERE'S DEFINITELY A
NEED FOR THINKING ABOUT OUR
RELATIONSHIP OF TECHNOLOGY AND
SOCIAL MEDIA AS THIS OVERALL
LANDSCAPE OF SOCIAL CONNECTION
IN THE UNITED STATES BUT EXCITED
TO SEE MOVING FORWARD ON HOW
THOSE IDEAS CAN KIND OF BE
IMPLEMENTED ON THE POLICY.
>>THANK YOU.
GOOD MORNING, THANK YOU SO MUCH,
MY QUESTION WAS RELEVANT TO THE
RURAL AND ETHNIC COMMUNITIES,
MANY THAT PARTICULARLY
[INDISCERNIBLE] LGBT COMMUNITIES
AND OTHER COMMUNITIES THAT WERE
REALLY HIT REALLY HARD WITH THE
PANDEMIC AND I'M WONDERING FROM
CULTURAL PERSPECTIVES WHAT KINDS
OF PLANS THERE ARE IN THAT
RESPECT AS WELL AS FOR LANGUAGE
ACCESS, YOU KNOW, PROVIDERS THAT
SPEAK THE LANGUAGES OF THE
MULTIPLE PEOPLE IN THE UNITED
STATES?
>>YEAH, I CERTAINLY APPRECIATE
THE PERSPECTIVE, WE DON'T SHY
AWAY FROM THE FACT THAT CERTAIN
POPULATIONS ARE DISPROPORTIONED
AND WE SEE THIS IN THE DATA.
AS WITH MANY HEALTH EISSUES,
THERE NEEDS TO BE A HEALTH
EQUITY LENS TO ADDRESS THE
PROBLEMS AND AS I SAID, THIS IS
1 OF--FIRST WE'RE IN THE EARLY
DAYS, THIS IS FIRST STEPS BUT WE
TRY TO HIGHLIGHT AS MUCH AS
POSSIBLE THAT IT IS NECESSARY TO
BE USING THAT LENS WHEN WE'RE
APPROACHING THIS ISSUE AND
ESPECIALLY AS PEOPLE ARE
CONSIDERING POLICY SOLUTIONS.
I HOPE THAT ANSWERS THE
QUESTION.
>>THANK YOU.
>>ANDY?
>>THIS IS SORT OF A FOLLOW UP
QUESTION TO LORDES'S QUESTION IN
A WAY, IT'S CENTERING ON THE
QUESTION OF THE DEGREE TO WHICH
THERE'S A SORT OF
ONE-SIZE-FITS-ALL SOLUTION TO
THIS PROBLEM AND THIS IS JUST
TOTALLY ARGUING FROM THE TOP OF
MY HEAD OF SORT OF THE SENSE OF
WHAT IS THE IMPACT OF LONELINESS
ON PEOPLE THAT THERE WAS
ENORMOUS VARIABILITY OF
INDIVIDUALS EVEN WITHIN A GROUP
AND NONE OF THE DISCUSSION I'VE
HEARD DR. MURPHY PRESENT, SORT
OF ACKNOWLEDGES THAT YOU KNOW,
SHOULDN'T WE ALSO BE THINKING
ABOUT IDENTIFYING THE
INDIVIDUALS WHO ARE MOST AT
RISK.
SO THERE'S SO THERE'S INDIVIDUAL
WHO IS WILL BE MUCH MORE
SENSITIVE THAN OTHERS TO SORT OF
EVEN THE SAME LEVEL OF
ISOLATION.
I DON'T KNOW IF THAT'S A SERIOUS
SORT OF RESEARCH QUESTION OR IF
IT'S GOING TO BE HELPFUL TO GET
TO A SOLUTION TO IT BUT THAT WAS
MY INITIAL REACTION HEARING THE
VERY EFFECTIVE INTERVIEW THAT
DR. MURPHY'S HAD ON NPR AND
ELSEWHERE, BUT, YEAH, THANK YOU.
>>YEAH, I CAN SPEAK A LITTLE TO
THAT.
I THINK THE IDEA HERE WITH
TRYING TO FOCUS MORE ON A
SYSTEMS LEVEL IS THAT WE KNOW
FROM THE RESEARCH THAT THE NEED
FOR SOCIAL CONNECTION IS SIMILAR
TO OUR MEANS FOR FOOD, WATER,
SHELTER.
IT'S A BASE NEED.
AND TO ADDRESS IT FROM--WE'RE
RECOGNIZING FROM IN THIS
ADVISORY THAT A LOT OF OUR
SYSTEMS ARE STRUCTURED IN WAYS
THAT SYSTEMATICALLY DISCONNECT
PEOPLE AND WE CAN SEE THAT OVER
RECENT YEARS.
I THINK WE HIGHLIGHT IN THIS
ADVICERY KIND OF THE WHOLE OF
SOCIETY APPROACH NEEDED BECAUSE
THAT IS REALLY THE PATHWAY
THROUGH WHICH WE CAN MOST
EFFECTIVELY LEAD TO CONNECTING
AND REACHING OUTS WITH OTHERS.
IN THE ADVISORY WE HIGHLIGHT
DIFFERENT STAKEHOLDERS AND WHAT
THEY CAN DO AND WE DO HAVE
PLENTY OF RECOMMENDATIONS FOR
INDIVIDUALS, BUT IF THIS WAS
SOMETHING THAT COULD BE SOLVED
ONLY BY INDIVIDUALS WITHOUT
STAKEHOLDERS THAT HOLD POWER, WE
WOULD HAVE A DIFFERENT SITUATION
RIGHT NOW.
THERE NEEDS TO BE A WHOLE OF
SOCIETY APPROACH.
>>TERRIFIC ANSWER, THANK YOU.
>>JOE?
>>HI, CAN YOU HEAR ME?
NYES.
>>YES.
>>GREAT.
APOLOGIES FOR THE BACKGROUND
NOISE, I'M IN THE AIRPORT BUT IN
THE DEPARTMENT OF VETERANS
AFFAIRSS WE WERE KEENLY
INTERESTED IN THIS REPORT AND WE
HAVE ACTIVITIES GOING FOR
TARGETED OUTREACH TO HIGH RISK
POPULATIONS INCLUDING VETERANS
THAT ARE BEING AT HIGH RISK FOR
SUICIDALLITY AND THESE ARE
NONMEDICAL INTERVENTIONS, MOSTLY
JUST A HI, HOW ARE YOU KIND OF
CONTACT.
AND I WOULD BE HAPPY TO CONNECT
YOU WITH SOME OF THE FOLKS THAT
ARE ENGEAJED IN THAT IN OUR
AGENCY.
THE SECOND PART I WAS GOING TO
MAKE WAS, ARE YOU CONSIDERING
AGENCIES THAT ARE NOT
TRADITIONALLY PART OF THE
MEDICAL OR PUBLIC HEALTH SPACE?
I REMEMBER A FEW YEARS AGO,
THERE WERE SOME INTERESTING
PILOT WORK USING MAIL CARRIERS
AS A WAY TO KEEP IN TOUCH WITH
SHUT-IN ELDERLY BECAUSE YOU KNOW
6 DAYS A WEEK THERE'S CONTACT
AND IF SOMEBODY'S NOT ANSWERING
THE DOOR OR PICKING UP THE MAIL,
THAT'S OFTEN A RED FLAG, SO I
DON'T KNOW IF YOU HAD A CHANCE
TO CONSIDER SOME OF THOSE
RELATIONSHIPS?
>>YEAH, SO THE WAY WE APPROACH
IT IN THE ADVISORY AND WE DON'T
NECESSARILY GO INTO SPECIFICS
LIKE THAT ALTHOUGH IT SOUNDS
LIKE AN INTERESTING APPROACH, WE
FRAME IT MORE IN THE SAME WAY
THAT WE SHOULD ACROSS GOVERNMENT
AND ACROSS THE COUNTRY WHEN
DESIGNING POLICIES AND PROGRAMS,
PRO SOCIAL CONNECTION SHOULD BE
1 OF THE CRITERIA THAT WE'RE
THINKING ABOUT WHEN WE'RE
DESIGNING POLICY SO WE THINK HOW
WILL THIS IMPACT ENVIRONMENT,
OTHER CONSIDERATIONS AND HOW
WILL THIS IMPACT PEOPLE'S
CONNECTION TO 1 ANOTHER.
SO I THINK BY USING THAT KIND OF
FRAMEWORK AND ESSENTIALLY ADDING
THIS PUBLIC HEALTH LENS ISSUES
WE CAN MAKE IT SO THAT THERE ARE
MORE CONNECTED POLICIES ACROSS
DIFFERENT INDUSTRIES AND
GOVERNMENT PLACES, BUT I HOPE
THAT ANSWERS THAT QUESTION, BUT
IT'S DEFINITELY A POINT OF
CONSIDERATION, I APPRECIATE
THAT.
>>THANKS, PATTY?
>>THANKS VERY MUCH, TAG, I WANT
TO TELL YOU A FEW THINGS WE'RE
DOING HERE AT THE NLM WITH
RESPECT TO THE SURGEON GENERAL'S
INITIATIVE ON WORKPLACE WELL
BEING AND UPDATE THE BOARD ON
THIS, WE WOULD USE THE CEREAL
MATERIALS THAT WERE AVAILABLE
ONLINE, IT'S A TERRIFIC SET OF
DOCUMENTS AND OUR LEADERSHIP MET
WITH EACH OF THOSE DIVISIONS TO
ADDRESS DIFFERENT PLAYS TO
ADDRESS WORKPLACE WELL BEING, 1
OF THE CHALLENGES IS WE'RE A
LARGELY DISTRIBUTED WORKFORCE
AND MOST OF OUR STAFF ARE IN 1
DAY A WEEK AND THAT'S NOT VERY
MUCH AND THE USUAL THINGS THAT
HAPPEN IN THE HALLWAY, THE
ENCOURAGEMENT, AWARENESS AND
CONCERNS ABOUT THIS CAN BE THE
HAPPEN IN THE SAME WAY SO WE'VE
ASKED OUR LEADERSHIP TO WORK
WITH THEIR SUPERVISORS AND THEIR
STAFF TO COME UP WITH WAYS TO
MAKE SURE WE'RE MONITORING THE
WELL BEING, WE'RE DOING WHAT CAN
BE DONE ABOUT PROMOTING WHAT YOU
SAID A PRO SOCIAL ENGAGEMENT
WHEN WE'RE ENGAGING LARGELY OVER
TECHNOLOGY AND WE REALLY LOOK
FORWARD TO LEARNING FROM OTHER
FEDERAL AGENCIES ABOUT WHAT
THEY'VE BEEN DOING TO BRING THIS
FORWARD BECAUSE IT REPRESENTS
PARTICULAR CHALLENGES WITH THE
DRIEWBTED WORKFORCE.
>>THANK YOU.
APPRECIATE THAT.
>>GREAT.
THANKS PATTY, THANKS, TAG.
ANY LAST QUESTIONS BEFORE WE
MOVE ON?
>>OKAY, WELL,--
>>YEAH, GO AHEAD.
>>SORRY, I JUST WANT TO ADD YOU
CAN REACH OUT TO US AT THE
E-MAIL ADDRESS LISTED HERE,
SURGEON GENERAL @HHS.GOV.
OR REACH OUT TO ME OR JEAN
GARCIA DAVIS DIRECTLY OR AS
MENTIONED YOU CAN VISIT THE
WEBSITE THAT HAS ALL THIS
INFORMATION AT SURGEONG
ENERAL.GOV/CONNECTIONS.
>>THANK YOU FOR JOINING US, I
WILL MOVE US TO THE NEXT TOPIC
WHICH IS A REVIEW OF THE MINUTES
AND THE FUTURE MEETINGS.
SO INCLUDED IN OUR EBOOK WAS A
COPY OF THE MINUTES FROM
FEBRUARY 2023.
SO I WANT TO GIVE THE BOARD AN
OPPORTUNITY TO RAISE ANY
CONCERNS ABOUT THE MINUTES,
OTHERWISE WE WILL MOVE ON TO AN
APPROVAL.
CAN I GET A MOTION TO APPROVE
THE MINUTES?
>>MOVED.
>>SO MOVED.
>>THANKS JIM.
>>AND A SECOND?
>>SECOND.
>>THANKS KRISTI.
ALL RIGHT, THE MINUTES ARE
APPROVED, ALSO WANT TO NOTE THAT
OTHER MEETING DATES HAVE BEEN
ADDED FOR THE 2025 SPRING
MEETING AND MAY 13-14th ARE
NOW ADDED.
SO I WANT TO GET AN APPROVAL OF
THAT NEW MEETING DATE.
MOTION TO APPROVE?
THANKS PHILLIP, AND THANKS JIM
FOR THE SECOND.
ANY OBJECTIONS OR CONCERNS?
GREAT.
MOVING ON.
SO NEXT WE'LL HEAR FROM PATTY
WHO'S GOING TO GIVE US A REPORT
FROM THE DIRECTOR.
>>GOOD MORNING EVERYONE AND
THANK YOU VERY MUCH FOR JOINING
US, THANK YOU TO OUR BOARD
MEMBERS, MANY OF YOU HAVE BEEN
ENGAGED IN ACTIVITIES OVER THE
INTERVENING PERIOD AND WE'RE
LOOKING FORWARD TO HEARING ABOUT
PROGRESS AND OUR PROJECTS.
I WELCOME THE NLM STAFF AND
PUBLIC ATTENDING THIS MEETING
TODAY.
I'M PARTICULARLY HAPPY TO SEELET
FRIENDS FROM THE NATIONAL
LIBRARY OF MEDICINE, GLEN AND
BARBARA THANK YOU VERY MUCH FOR
BEING HERE AND WE'RE WELCOMING
YOU.
TODAY I'M HAPPY TO BE JOINING
YOU FROM OUR INTERIM SPACE ON
THE SEVENTH FLOOR OF THE LISTER
HILL ROOM.
WE'RE IN THE PROCESS OF
RENOVATING OUR 2 BEAUTIFUL
BUILDING HERE AND THE PROCESS IS
TAKING LONGER THAN WE EXPECTED
BUT NONETHELESS, WE WILL BE
INVITING TO YOU CAMPUS FOR OUR
NEXT BOARD MEETING IN SEPTEMBER
OF THIS YEAR SO KRISTIN - WILL
BE PROVIDING YOU WITH
DETAILTHAT.
WE ANTICIPATE THIS MEETING TO BE
A 2 DAY MEETING WE WILL DISCUSS
LOGISTICS BUT IT WILL BE
WONDERFUL TO SEE YOU ALL IN
PERSON AND I'M LOOKING FORWARD
TO THE TIME.
I HOPE THE PROCESS IS HELPFUL
AND WE ARE ABLE TO GET TOGETHER
LONG ENOUGH TO RECONNECT IN SOME
OF THE WAYS THAT THIS BOARD HAS
ALWAYS BEEN HELPFUL TO US.
I HAVE MY DIRECTOR'S REPORT
TODAY AND AS USUAL, I HAVE
WONDERFUL THINGS TO TELL YOU AND
IN THE ROOM WITH ME TODAY IS
OLIVIA, TODD, LISA,
VALENTINEDRY, MIKE, RICHARD,
WEI, AND STEVE.
DIANE IS CONNECTING FROM SOME OF
OUR TEMPORARY OFFICE SPACE
ELSEWHERE IN THE BUILDING AND I
BELIEVE CLEM IS CONNECT FROM A
REMOTE SITE.
OUR LEADERSHIP CONTINUES TO
ENGAGE IN NEW DIRECTIONS FOR THE
NLM, ESPECIALLY IN LOOKING AT
HOW WE'RE GOING TO CONTINUE TO
BE PRODUCTIVE IN THIS AMAZING 33
YEAR PROCESS OF HAVING A
DISTRIBUTED WORKFORCE.
BUT THE PROCESS IS ACTUALLY ALSO
BRINGING US A MOMENT OF CHANGE.
YOU MAY HAVE HEARD ALREADY, THE
ANNOUNCEMENT THAT OUR DEPUTY
DIRECTOR FOR POLICY AND EXTERNAL
AFFAIRS JAY SHEEHAN WILL BE
LEAVING, AFTER 17 YEARS OF
SERVICE IN THE GOVERNMENT, JERRY
WILL BECOME THE DIRECTOR OF
SCIENCE TECHNOLOGY AND
INNOVATION AT THE OECD IN PARIS.
JERRY HAS SERVED IN MANY ROLES
AND HAS THE MANY PICTURES YOU
SEE, THE VARIOUS ROLES JERRY HAD
IF YOU LOOK CLOSELY AT THE LOWER
RIGHT HAND CORNER, HIS ATHLETIC
PROWESS IS SOMETHING WE DEPENDED
ON HERE AT THE NLM BUT IN HIS
ROLES AS A POLICY THINKER AND
LEADER HE HELPED TO LAUNCH SUCH
THINGS AS THE DATA MANAGEMENT
AND SHARING POLICY, THE PUBLIC
ACCESS POLICIES OVER THE LAST
DECADE INCLUDING OUR RECEIPT
UNDATES IN THE PUBLIC ACCESS
POLICIES, SOMETHING WE REFER TO
AS THE PREPRINT PILOT WHICH WAS
A RADICAL CHANGE AT THE NATIONAL
LIBRARY OF MEDICINE TO MOVE TO
MAKING NIH RESEARCH DISCOVERABLE
THROUGH OUR PUB MED AND PUB MED
CENTRAL, JERRY'S TAKEN A LEAD IN
THE LAST YEAR TO ADADVANCE AND
FORMALIZE OUR INTERNATIONAL
ENGAGEMENTS AND THIS HAS BEEN
PARTICULARLY IMPORTANT AS WE
FACE THE NEED TO UNDERSTAND
GLOBAL PUBLIC HEALTH THROUGH
SEQUENCES.
DURING THE 17 YEARS THAT JEERRY
HAS BEEN HERE, HE'S ALSO TAKEN 2
BREAKS FROM THE NIH TO GO TO
WORK AT THE OFFICE OF SCIENCE
TECHNOLOGY AND POLICY, WHERE HE
SHAPED THEIR RESEARCH INTEGRITY
INITIATIVES AND THEIR PUBLIC
ACCESS, AS A SMALL DEMONSTRATION
OF OUR RESPECT FOR JERRY, I HAVE
A BRIEF PRESENTATION FOR HIM AND
I'M NOT SURE YOU WILL BE ABLE TO
SEE THIS ON THE SCREEN, NO, YOU
CAN ONLY SEE MY ARM.
THERE YOU ARE.
[LAUGHTER]
TRUST ME THERE'S A BEAUTIFUL
PLAQUE HERE THAT WE ARE
PRESENTING TO JERRY, SO HE CAN
TAKE US ALL WITH HIM.
WE WILL TAKE A PICTURE AND SEND
IT OUT WITH THE BOARD MINUTES.
WE WILL HOST AN EVENT HERE AT
THE NLM LISTER HILL CENTER AT
MAY 23rd AT 4 FOR OUR NLM
COLLEAGUES IN TOWN.
PLEASE COME AND JOIN US.
FOR THOSE WHO ARE VIRTUAL, WE
WILL RECEIVE VIDEO GREETINGS IF
YOU WOULD LIKE TO SEND VITIO
GREETINGS BUT I WANT TO GIVE
JERRY A MOMENT TO REFLECT ON HIS
TIME HERE AND FUTURE DIRECTIONS.
>>THANK YOU PATTY, AFTER ALMOST
17 YEARS HERE, AND 5, 6, 7,
WORKING DIRECTLY WITH PATTY
BRENNAN, SHE CAN STILL SURPRISE
ME.
STILL HAS SURPRISED LIKE TODAY.
SO LET ME JUST SAY, I MEAN THIS
IS AN OPPORTUNITY FOR ME THAT
WILL PULL TOGETHER A WHOLE LOT
OF THREADS OF MY PROFESSIONAL
YEAR RELATED TO HEALTH AND
INFORMATION AND SCIENCE AND
TECHNOLOGY POLICY, BUT IT'S A
BITTER SWEET MOMENT FOR ME AS
WELL BAWSES I HAD A WONDERFUL
CAREER AND OPPORTUNITY HERE AT
NLM FOR ALMOST 17 YEARS AND I AM
AMAZED AT ALL THE INCREDIBLE
THINGS THAT I HAVE BEEN ABLE TO
DO AND CONTRIBUTE TO HERE AT THE
NLM, SERVICES, PUBLIC SERVICES
THAT WE OFFER TO RESEARCHERS AND
CLINICIANS AND THE GENERAL
PUBLIC AND OUR RESEARCH PROGRAM
WHICH IS REORGANIZED AND GOING
IN NEW DIRECTIONS AND WORKING
WITH INCREDIBLE TEAM OF PEOPLE
HERE ON THE LEADERSHIP WHO ARE
SITTING HERE IN THE ROOM WITH ME
TODAY WHICH IS GREAT TO CONNECT
AGAIN AND WITH THE STAFF.
AND MAYBE REFLECTING ON THE
REPORT FROM THE SURGEON
GENERAL'S OFFICE.
I MEAN THERE IS A SENSE OF
COMMUNITY AROUND NLM THAT
EXTENDS CERTAINLY YAWBD THESE
WALLS AND THE NIH CAMPUS AND
INCLUDES THOSE OF YOU ON THE
BOARD OF REGENTS WHO ARE PART OF
OUR EXTENDED FAMILY HERE.
ALL OF OUR OTHER FACAs AND
ADVISORIES AND TRAINEES AND
RESEARCHERS AND LIBRARIANS WHO
WE INTERACT WITH AND THAT IS ALL
FOR ME, REALLY ENRICHED MY
EXPERIENCE AND I WILL LOOK BACK
ON IT VERY FONDLY AND I WILL
LOOK FOR OPPORTUNITYS TO STAY
ENGAGED WITH MANY OF YOU IN
DIFFERENT WAYS FROM MY NEW
POSITION.
I ALSO JUST WILL SAY, I DO FEEL
LIKE, I CAN STEP OUT OF THIS
POSITION AND NLM AND ALL THE
COMMUNITIES THAT SERVES WILL
CONTINUE TO BE INCREDIBLE
LOAMACYY WELL SERVED WITH THE
GREAT LEADERSHIP TEAM WE HAVE
HERE AND THE GREAT STAFF WE HAVE
HERE AT THE NATIONAL LIBRARY OF
MEDICINE AND I KNOW ALL OF YOU
WILL CONTINUE TO PROVIDE GOOD
INSIGHTFUL AND EFFECTIVE ADVICE
AND INPUT TO US TO GUIDE US ON
NEXT STEPS SO THANK YOU VERY
MUCH FOR ALL OF THAT AND AND I
WILL LOOK FORWARD TO SEEING SOME
OF YOU WHEN YOU COME TO PARIS AS
WELL.
>>THANK YOU JERRY.
JERRY'S PROMISED TO GET AN EXTRA
BEDROOM FOR VISITORS.
[LAUGHTER]
I WILL TAKE JUST A MINUTE TO
REFLECT PERSONALLY ON MY
EXPERIENCE WITH JERRY, WE MET
EARLY ON IN THE 90S AT A
NATIONAL ACADEMIES WORKING
GROUPS AND ENJOYED CONVERSATIONS
WITH EACH OTHER OVER A DECADE
NEVER REALIZING WE WOULD WORK
TOGETHER SO CLOSELY.
I REMEMBER A DAY EARLY IN MY
TIME AT THE NLM WHEN JERRY WAS
ON 1 OF HIS OSTPD DETAILS AND HE
WAS PASSING ON THE METRO AND
FEELING THE COMPANIONSHIP AND
PART SHERSHIP, THIS TURNED INTO
JERRY'S INTEREST BECOMING DEPUTY
DIRECTOR TO THE NATIONAL LIEB OF
MEDICINE WHICH HAPPENED AROUND
2017.
AND OVER THE PAST 6 YEARS WE
FORGED A PARTNERSHIP THAT HAS
BEEN EFFECTIVE FOR THE NLM AND
NIH, AND THE GOVERNMENT OVERALL.
WE'VE LEARNED HOW TO LEARN FROM
EACH OTHER, LEARNED HOW TO GIVE
EACH OTHER SPACE BUT MOST
IMPORTANTLY WE LEARNED HOW TO
ADVANCE THE NATIONAL LIBRARY OF
MEDICINE.
CERTAIN ACTIVITIES COULD NOT
HAVE HAPPENED WITHOUT JERRY.
HE LED AND MADE SURE OUR BLUE
RIBBON PANEL OF THE VISION OF
OUR INTRAMURAL RESEARCH PROGRAM,
THAT PROCESS WENT ON FOR OVER 5
YEARS AND THAT PROCESS HAS TAKEN
ON MANY, MANY CHARACTERISTICS OF
A FUTURE WHERE INFORMATION,
DISCOVERY IS LINKED BETWEEN
BASIC COMPUTATIONAL BIOLOGY AND
CLINICAL WORK THIS HAS BEEN
TAKEN OVER BY VALERIE FLORENCE
AND IT'S BEEN WELL DONE.
THE OTHER PART I WANT TO MENTION
ABOUT JERRY IS HE KNOWS ME AND
HE KNOWS WHEN TO PUSH BACK WHEN
HE THINKS I'M NOT DOING
SOMETHING IN THE BEST INTEREST
OF NLM, AND I PUSH BACK ON HIM
AS WELL.
BUT BEING A DIRECTOR IS MAKING
AN INSTITUTE MOVE AND YOU DON'T
DO IT ON YOUR OWN AND THE DEPUTY
DIRECTOR IS PARTICULARLY
IMPORTANT WITH THAT.
THEY NEED TO MAINTAIN SITUATION
AWARENESS, LEVEL OF INDEPENDENCE
AND A LENS LENS LENS LENS OF
TRUST WE HAVE BUILT AND I'M
GRATEFUL FOR IT.
AS I SAID TO JERRY EARLIER TODAY
ISSUE I WOULD PREFER NOT TO HAVE
TO DO THIS BUT THE FACT THAT
HE'S GOING TO, SUCH A GREAT
OPPORTUNITY.
I CAN ONLY SAY BEST WISHES AND
TAKE OUR GOOD WISHES WITH YOU.
>>I WILL, THANK YOU PATTY. SIM
SENTIMENT ON MY SIDE.
>>NOW WE WILL GET TO WORK, PART
OF WHAT JERRY HELPED US
FORMULATE IN HIS ROLE FIRST
ASAUR ASSISTANT DIRECTOR FOR
POLICY NEAR INFORMATION AND THE
DEPUTY DIRECTOR IS THE STRATEGIC
PLAN FOR THE NATIONAL LIBRARY OF
MEDICINE AND THIS STRATEGIC PLAN
HAS BEEN IN PLACE NOW FOR 6
YEARS, MIKE [INDISCERNIBLE] DID
A LOT OF THE HEAVY LIFTING TO
DRAFT THIS PAN, OUR 3 PILLARS,
ACCELERATE DISCOVERY AND
ADADVANCE HEALTH THROUGH DATA
DRIVEN RESEARCH, REACH MORE
PEOPLE IN MORE WAYS THROUGH
ENHANCE DISSEMINATION AND
ENGAGEMENT, BUILD A WORK FOR FOR
DATA-DRIVEN RESEARCH AND HEALTH,
IT'S A BROAD NETWORK THAT WE
CREATED NEW INITIATIVES AND WE
HAVE DEVELOPED NEW PLANS AND
PROGRAMS UNDER THIS AND WE
APPRECIATED THE BOARD'S SUPPORT,
WE REPORT ON A REGULAR BASIS IN
OUR STRATEGIC DIRECTIONS GROUP
ABOUT OUR PROGRESS IN THIS AREA,
WE CONTINUE UNDER LISA FEDERER'S
DIRECTOR TO BUILD NOW WAYS FOR
EVIDENCE BASED DECISION MAKING
SO THAT WE CAN DEMONSTRATE THAT
OUR OCOMPLISHMENTS ARE SUPPORTED
BY THE EVIDENCE THAT WE'RE IN
FACT ACCOMPLISHING THEM AND NOT
JUST BRAGGING ABOUT THEM BUT WE
DO BRAGGING HERE AND THE NEXT
PIECE WILL BE A BIT OF OUR BRAG.
OUR OFFICE OF COMMUNICATION AND
PUB LIBRARY FOUNDATION LIAISON
HAS BEEN GREAT IN DEVELOPING
VIDEOS TO COMMUNICATE OUR WORK.
TODAY YOU WILL VIEW A VIDEO FROM
1 OF OUR EXTRA MIEWRALLY FUNDED
PROGRAMS THAT REACHES A SPANISH
LANGUAGE COMMUNITY AND SO YOU
WILL SEE A VIDEO THAT IS
PARTIALLY IN SPANISH AND
PARTIALLY IN ENGLISH.
WE HAVE 2 VERSIONS OF THIS
VIDEO, THERE'S AN ENGLISH
LANGUAGE VERSION AND A SPANISH
LANGUAGE VERSION.
I DID NOT WANT TO TAX YOUR
THINKING TO HAVE YOU RUN THROUGH
THE TIRE SPANISH LANGUAGE
VERSION, BECAUSE MOST OF YOU
PROBABLY AREN'T AS FLUENT AS YOU
NEED TO BE BUT YOU WILL SEE IN A
FEW MINUTES OF HOW IT APPEARS TO
BE IN SPANISH.
SO IF I CAN ASK THE MEDIA STAFF
TO START THE VIDEO PLEASE?
MEDIA?
ALL RIGHT.
[♪ MUSIC ♪]
IT'S A FREE APPLICATION
TECHNOLOGY INFORMATION AIMED FOR
PARENTS 0-3.
THE GOAL OF THE APP IS TO
PROMOTE BILING Y'ALLISM AND
INSURE THAT MILESTONES ARE MET
AND REALLY PROMOTE SOCIAL
LINGUISTIC PRIDE AMONG FAMILIES.
>>SOCIAL LINGUISTIC PRIDE CAN
BE DEFINED AS SPEAKING SPANISH
AND SPEAK PANNISH TO RAISE YOUR
CHIEND BILINGUALLY AND KEEP THAT
SPANISH UP.
[♪ MUSIC ♪]
[SPEAKING SPANISH ]
EXPHELGT EDUCATION ARE
INTERMITTENTLY INTERTWINED.
EIGHTY% OF BRAIN DEVELOPMENT
HAPPENS IN THE EARLY DAYS OF
LIFE.
WE WANT TO INSURE A CHILD IS
MEETING THOSE DEVELOPMENTAL
MILESTONES SO WE CAN INTERVENE
EARLY AND ACT WHEN NECESSARY.
>>[SPEAKING SPANISH ]
SHRKS WE DECIDED TO APPLY FOR
THE NATIONAL LIBRARY OF MEDICINE
FUNDING BECAUSE WE WANTED TO
INFUSE THE APP WITH SEVERAL MORE
RESOURCES THAT WERE VIDEO AND
AUDIO BASED FOR FAMILIES AND
INCLUDE INCENTIVIZATION LIKE
GAMING COMPONENTS, LIKE GAMING
ACTIVITIES THEY DO OFF THE APP
AND ESPECIALLY TO ADD THE
PARTNERSHIP WITH THE PUBLIC
LIBRARY SYSTEM.
>>OUR LIBRARY, WE HAVE IT IN
THE 700 TABLETS DOWNLOADED IN
THERE AND LIBRARIES ARE
INFORMATION HUBS SO WE'RE HAPPY
TO HELP OUR COMMUNITIES THAT
WAY.
>>THE NATIONAL LIBRARY OF
MEDICINE GRANT MECHANISM IS IN
MY OPINION THE MOST IMPORTANT
WAY TO GET SCIENCE AND RESEARCH
THAT'S BEING DONE AND INTO THE
HANDS OF FAMILIES AND PARENTS
AND IT ALLOWS US TO CREATE
PROJECTS THAT DIRECTLY TRANSLATE
THAT SCIENCE INTO EVERYDAY
PRACTICAL STRATEGIES WE CAN DO
TO PROMOTE HEALTH.
[SPEAKING SPANISH ]
>>C BRENNAN, YOU ARE STILL
MUTED.
>>MY THANKS TO THE MEDIA OPs
TEAM FOR DEVELOPING THE VIDEO
AND OUR VIDEOGRAPHERS AND OUR
EXTRA MIEWR PROGRAM LED BY
DR. RICHARD PALMER WHO NOT ONLY
SUPPORTS RESEARCH BUT ALSO
CERTAINTIES SPECIAL
DISSEMINATION PROJECTS THAT MAKE
SURE INFORMATION GETS INTO THE
HANDS OF THE PUBLIC.
I WANT TO GIVE YOU A FEW UPDATES
NOW ON OTHER THINGS THAT HAVE
BEEN HAPPENING SINCE WE MET LAST
IN FEBRUARY.
WE'VE BEEN HAVING A STRONG FOCUS
ON CAPACITY DEVELOPMENT, NEW
RESEARCHES, NEW RESEARCH
INTEREST, AS WELL AS TRAINEES.
WE HOSTED A MEETING ADDRESSING
THE NEEDS OF TAILORED
POPULATIONS AND FROM THIS WE
ANTICIPATE A NEW SOLICITATION IN
THE NEXT YEARS, WE WILL ALSO
HOLD A T15 TRAINING CONFERENCE
JUNE 21-23, AND PLEAS REGISTER.
REGISTRATION CLOSES JUNE 7th.
WE HAVE A VERY EXCITING
CONNECTION WITH THE AI FEDERAL
LEADERSHIP PROGRAM.
DIANE BABSKI, IS THE DIRECTOR
FOR THE OPERATIONS EXPRESSED AN
INTEREST IN THIS PROGRAM AND
ACTUALLY SPENT ABOUT 6 MONTHS
LEARNING ABOUT AI, SHE'S BEEN
OUR [INDISCERNIBLE] ABOUT AI AND
ITS USES HERE.
HER WORK HAS BEEN RECOGNIZED
THROUGHOUT THE NIIH AND SHE'S
PREPARED SEVERAL SLIDE DECKS TO
BE SHARED WITH THE CDC AND WITH
ABOUT A HUNDRED TEAMS ON CAMPUS
SO NOT ONLY IS IT HELPING THE
NLM UNDERSTAND BETTER HOW WE'RE
GOING TO USE ARTIFICIAL
INTELLIGENCE IN OUR PROJECTS BUT
IT ALSO IS HAPPENING THE NLM'S
LEADERSHIP AND EXPERTISE BEING
SHARED AROUND THE COUNTRY AND
AROUND THE NIH.
IN OUR IMPOSSIBLE TO BUILD
RAMURAL PROGRAM, OUR RESEARCHERS
ARE USING AI BASED IMAGE
INTERPRETATIONS FOR IN-FIELD
ACTIVITIES, 1 IS IN-FIELD
MALARIA DIAGNOSIS, THIS IS WORK
OF STEPHAN YEAGER AND HE
REPORTED ON IT [INDISCERNIBLE]
BUT THERE'S A BRIEF REPORT IN 1
OF THE MAY [INDISCERNIBLE] OF
RESEARCH ON THE MEZZANINE.
THIS HELPS US REACH PEOPLE IN
UNDERRESOURCED AREAS, DR. KIM IS
WORKING ON WAYS TO DETECT
RETINAL IMAGES, YOU SEE THE DEEP
LEARNING ALGORITHM SINCE IT
MIGHT NOT BE DETECTABLE TO THE
HUMAN EYE.
THIS WILL BE INTRODUCED AND PUT
INTO OUR TECH TRANSFER
OPERATIONS HERE.
WE'VE BEEN SUPPORTING OUR
INTRAMURAL TRAINEES IN A NUMBER
OF DIFFERENT WAYS, WE WELCOME 55
SUMMER INTERNS INCLUDING 9 IN
THE NLM DATA SCIENCE AND
INFORMATICS SCHOLARS PROGRAM
HERE AT OUR INTRAMURAL RESEARCH
PROGRAM.
WE ALSO LEARNED TODAY WE HAVE A
MEDIA OPERATIONS INTERN FOR US
FOR THE SUMMER WITH ANGEL O O
WELCOME ANGELLO, ALONG WITH THE
NIH WE HAVE RAISED THE TRAINEE
SALARIES TO IMPROVE THEIR
COMPOSITION, IF YOU HAVE BEEN
FOLLOWING SOME OF THE CONCERNS
AROUND THE COUNTRY, PROTESTS AND
STRIKES GOING ON AT
UNIVERSITIES, OUR TRAINEES NEVER
WENT ON STRIKE BUT WE RECOGNIZE
THEY WERE NOT PAID MARKET RATE
AND WE WERE ABLE TO GIVE THEM
SUBSTANTIAL RAISES FOR OUR POST
BACCALAUREATES THROUGH OUR POST
DOCS.
WE ALSO PARTICIPATE INDEED THE
NIH POSTER SESSION AND WE SEE
MOSTERS PRESENTED BY OUR TEAMS
AND WE HAVE A LOT OF ACTIVITY IN
OUR TRAINEES LEARN TO BE
ARTICULATE AND EXPLAIN THEIR
RESEARCH TO PEOPLE WHO ARE NOT
NECESSARILY DEEPLY SKILLED LIKE
THE DIRECTOR WHO NEED VERY
SIMPLE LANGUAGE TO LEARN WHAT
WAS GOING ON.
WE CONTINUE TO COMMIT TO
IMPROVING SERVICES TO SCIENCE
AND SOCIETY.
THE NCBI HAS BEEN WORKING HARD
TO MAKE BETTER TOOLS FOR VIRUS
STUDIES INCLUDING EXPANDED
VISUALIDESSATION OF COLLECTION
INFORMATION AND OF METADATA.
METADATA HAS BEEN REALLY
IMPORTANT TO DISCOVER
INFORMATION THAT WE ABOUT
CERTAIN SEQUENCES.
OUR SEQUENCE RADAR CARVED THE
LARGEST PUBLICLY AVAILABLE
DATABASE IN THE WORLD.
IT CONTINUES TO BE MADE
AVAILABLE TO THE PUBLIC, TO THE
AMAZON, OPEN PUBLIC DATA THROUGH
RESEARCHERS IN THE COUNTRY
THROUGH AMAZON WEB SERVICES AND
THROUGH GOOGLE CLOUD.
WE WORKED ON STREAMLINING THE
DATA DISTRIBUTION BY MOVING ALL
OF OUR SARS-COV-2 DATA INTO A
SPECIAL REGISTRY AND WORKING TO
ENHANCE TRANSPARENCY EEFFICIENCY
AND RELIABLE RESOURCE, BECAUSE
THIS RESOURCE RUNS ABOUT
12 MILLION-DOLLAR A CONTRARY TO
SUPPORT, MUCH OF WHICH IS
SUPPORTED BY NIH AND THE REST IS
SUPPORTED BY OUR BASIC
ALLOCATION HERE AT THE NLM, WE
HAVE TO MAKE SURE IT'S OPERATING
AS EFFICIENTLY AS POSSIBLE AND I
COMMENT STEVE SHERRY AND HIS
TEAM FOR CONSTANTLY LOOKING FOR
WAYS TO MAKE USE OF THIS AND
EFFICIENT WAY WHILE MAINTAINING
QUALITY THE NCBI HAS BECOME
KNOWN FOR.
WITH RESPECT TO PUB MED CENTRAL
WE DEVELOPED A DISCLAIMER THAT
NEEDED TO BE PRODUCED ON OUR
WEBSITE.
WHAT WE FIND IS MOST PEOPLE WHO
COME TO LOOK AT A CITATION IN
PUB MED CENTRAL COME THROUGH
GOOGLE SEARCH SO THEY NEVER GO
THROUGH THE NLM'S FRONT DOOR.
WHAT WE NEED DO IS REMIND THEM
THAT THE WORK THEY'RE READING
WAS NOT CONDUCTED BY THE NLM OR
MAYBE NOT CONUCT DIDDED BY THE
NIH BUT REPORTED IN A CITATION,
ON A SCREEN YOU SEE HOW THIS
NOTIFICATION APPEARS IN A
RESPONSIVE DESIGN ON A MART
PHONE.
SO IF SOMEONE IS USING A SMART
PHONE WHICH IS THE LARGEST WAY
PEOPLE ARE ACCESSING OUR
MATERIALS TO READ THEM RIGHT
NOW.
IT APPEARS THAT THE INDIVIDUAL
KNOWS THE PROPER ABIEWKS, THIS
MADE US MUCH MORE ACCESSIBLE
ACROSS THE NIH BECAUSE WE'RE
GETTING CREDIT FOR WORK BUT
THAT'S NOT APPROPRIATE.
>>WE STARTED REVIEWING FULL
SPANISH LANGUAGE JOURNALS FOR
THE PMC.
IN THE PAST WE ACCEPTED ARTICLES
AS LONG AS THEY HAD AN ENGLISH
WRITTEN LANGUAGE ABSTRACT, IF
THEY'RE WRITTEN IN SPANISH, BUT
NOW WE'RE UNDERTAKING A PILOT TO
MAKE SURE OUR SPANISH LITERATURE
BECOMES ACCESSIBLE.
WITHIN LIBRARY OPERATIONS AND
OSIS, LED BY DIANE BABSKI AND
[INDISCERNIBLE].
WE AUTOMATED THE REQUEST AND
STREAMLINED REGISTRATION, THIS
HAS CUT DOWN REQUESTS FOR
SPECIAL ARTICLES THAT ARE UNABLE
TO BE FOUND IN LOCAL HOLD, FROM
WEEKS TO HOURS IN SOME CASES AND
IT'S ALSO MADE BET ARE USE OF
OUR COLLECTION.
AND WE MERGED THE INDEX
FUNCTIONALITY INTO THE PUB MED
DATA ANALYSIS SYSTEM.
SO WE'RE WORKING WITH OUR
INDEXING SYSTEM AND OUR DATA
MANAGEMENT SYSTEM, RIGHT THOU WE
HAVE FULL AUTOMATION AND WE ARE
ABLE TO MORE EFFECTIVELY MANAGE
CHEMICAL AND GENE CURATION, EACH
OF THESE IMPROVING OUR ACCESS TO
THE PUBLIC.
NOW WE'RE ASKING FOR YOUR INPUT
AND SHARE WITH YOUR COMMUNITIES
IF ARE OUR CENTER FOR SCIENTIFIC
REVIEW.
THE CENTER FOR SCIENTIFIC REVIEW
IS SOPHISTICATED LITING
INFORMATION AND PUBLIC REACTION
TO A SET OF NEW CRITERIA WILL BE
USED FOR EVALUATING THE NRSA
FELLOWSHIPS.
THESE RUTH CHRISTINE AWARDS
SUPPORT THE BIOMEDICAL AND
BIOMEDICAL INFORMATICS TRAINEES
AROUND THE COUNTRY.
SO WE'RE EXTREME LINING THE
EVALUATIONS SO THEY BECOME MORE
FAIR, LESS BIASED AND MORE OPEN
TO INCLUSIVITY AROUND THE
COUNTRY.
PLEASE TAKE A LOOK AT THIS RFI,
THE LINK WILL BE IN THE SLIDE
DECK THAT YOU GET AT THE END OF
THE MEETING AND IF--ENCOURAGE
YOUR TRAINEES AS WELL AS YOUR
OWN FACULTY TO RESPOND TO THIS
WHERE APPROPRIATE.
I WANT TO TAKE A FEW MINUTES TO
TALK TO YOU ABOUT A BIG
INITIATIVE HERE AT NIH THAT I'VE
BEEN DEEPLY INVOLVE WIDE FOR THE
LAST 2 YEARS AND THAT'S THE
ININVOLVEMENT OF THE NIH'S
STRATEGIC PLAN FOR INFORMATION
TECHNOLOGY.
REFERRED TO AS DIGITAL NIH, THIS
PLAN WAS CO-DEVELOPED BY A LARGE
TEAM OF PEOPLE LED BY MYSELF AND
ANDREA NARS WHO WAS THE DIRECTOR
OF CIT, THE CENTER FOR
INFORMATION TECHNOLOGY.
ANDREA RETIRED LAST YEAR AND OUR
OWN DESOUZA IS SERVING AS THE
INTERIM DIRECTOR, BUT THE
IMPLEMENT AILINGS IS THE
PARTNERSHIP BETWEEN ME AND THE
OFFICE OF THE CIO, DENNIS
[INDISCERNIBLE] BEING THE ACTING
CIO AS CO-CHAIRS OF THE NIH
ENTERPRISE I.T. COUNCIL.
THIS HAS BEEN AN AMAZING
EXPERIENCE LOOKING ACROSS THE
DRIVERS OF SCIENCE IN THE NIH.
WE RECOGNIZE THAT THE ROLE OF
TECHNOLOGY AND SCIENCE IS
CHANGING, TECHNOLOGY'S BECOMING
INSEPARABLE FROM THE RESEARCH
PROCESS AND YET WE STILL HAVE
VERY LOCALIZED APPROACHES TO
PURCHASING AND GOVERNING
TECHNOLOGY WHICH ARE BOTH NOT
VERY COST EFFECTIVE AND FRANKLY
LEAVING US OPEN TO SOME SECURITY
ISSUES AND WE HAVE A COMMUNITY
WHERE THE EXPECTATION IS
TECHNOLOGY SOME BE EVER PRESENT
AND SHOULD BE AVAILABLE TO
ANYONE, ANYWHERE TO CONDUCT
RESEARCH OR CONDUCT THE BUSINESS
OF THE NIH.
SO WE--THE CRUX OF THE NIH
DIGITAL NIH STRATEGIC PLAN EDGE
SEA NEW WAY OF DOING BUSINESS TO
SUSTAIN A SCIENTIFIC ENTERPRISE
AND POWERED BY TECHNOLOGY.
WE CONSTRUCTED A PLANNING
PROCESS, ENGAGED OVER 400 STAFF
ACROSS THE NIRE AND
CONVERSATIONS BENCHMARKING WITH
OUTSIDE ORGANIZATIONS AND
RESEARCH ORGANIZATIONS AND
RECEIVED INFORMATION FROM ALL
GOVERNANCE COMMITTEES WHICH
MEANS I WAS IN A LOT OF MEETING
FOR A WHOLE LOT OF TIME BUT WE
CAME UP WITH A MODEL THAT MOVED
AWAY FROM THE NIH'S SPECIFIC
PLANNING TO LOOK AT FUNCTIONAL
PLANNING.
AND WE HAVE 4 YEARS, EXTRAMURAL
RESEARCH MANAGEMENT, THE CONDUCT
OF RESEARCH MANAGEMENT, NOT THE
GRANT THEMSELVES, ADMINISTRATION
MANAGEMENT, INTRAMURAL BASIC AND
CLINICAL RESEARCH AND CROSS
CUTTING CAPABILITIES.
THESE 4 ARE SET UP AS AN ITS OWN
FUNCTION, EACH HAS AN EXECUTIVE
SPONSOR, YOU SEE ACROSS THE
STOP, THE COLLEAGUES, AND WE
ENVISION A FUTURE WHERE THE
FUNCTIONAL NEEDS OF THESE AREAS
ARE MET THROUGH APPROPRIATE
INVESTMENT AND INFORMATION
TECHNOLOGY.
IN THE NEXT 6 MONTHS ACTUALLY
WE'RE NOW INTO THIS, WE'RE
INVOLVED IN 3 SEPARATE CRITICAL
ACTIVITIES, FIRST IS
ESTABLISHING ADAPTIVE
GOVERNANCE, THIS A SEAT CHANGE
IN THINKING FOR THE NIH MOVING
FROM ANY IC, HAS MONEY, CAN DO
WHAT THEY WANT, TO MAKING SURE
EVERY IC GETS WHAT THEY NEED.
BUT STANDING UP IMPLEMENTATION
TEAMS WHICH WILL INCLUDE
DEVELOPING A BUSINESS CASE FOR A
CHYLE PROJECT TO BE IMPLEMENTED
IN THIS FISCAL YEAR AND WE'RE
ACTING ON BUILDING NEW BASIC
LIGHT WEIGHT ARCHITECTURE
STANDARDS AND STARTING WORKFORCE
DEVELOPMENT IN STRATEGIES AND
PLACE.
OUR IMPLEMENTATION PLAN WE THINK
WILL TAKE A FULL 4 CAREERS TO
PULL TOGETHER, BUT WE RECOGNIZE
THAT THE FIRST GROUNDING YEAR
SYSTEM MOST ESSENTIAL BECAUSE
THIS IS WHERE WE NEED TO
DEMONSTRATE THAT WE'RE DOING
SOMETHING IS NOT JUST HAVING
COMMITTEES THAT TALK ABOUT
THINGS.
SO OUR PLANS ARE VERY QUICK, WE
ESTABLISH CAPABILITY PORTFOLIOS
TO ROADMAPS THAT ARE UPDATER
DEVELOPMENT RIGHT NOW, A PROOF
OF CONCEPT WILL BE DEVELOPED IN
JULY AND FUNDING WILL BE
DISTRIBUTED IN AUGUST.
SO THERE'S A FAST TRACK.
WE HAVE 90 PEOPLE INVOLVED WITH
THIS IN OUR INTRAMURAL PROGRAM
AND THE OFFICE OF THE DIRECTOR
STAFF.
VERY EXCITED ABOUT THIS PROGRAM,
LOOKING FORWARD TO COMMENTS AND
QUESTIONS ON IT.
A QUICK WORD TO BUDGET BEFORE I
TURN IT OVER TO [INDISCERNIBLE]
WE HAVE RECEIVED $497,404,000.
WE ANNOUNCED THIS 2 YOU AT THE
BEGINNING OF OF THE LAST MEETING
IN FEBRUARY.
WE FINALLY RECEIVED
APPROPRIATIONS AND STARTED THE
LOGISTICAL WORK IN JANUARY AND
WE DECIDED TO DO THIS YEAR IS TO
TAKE THE ADDITIONAL FUNDS WE
RECEIVE TO IDENTIFY NEW
INVESTMENTS SO WE ASKED EACH OF
OUR LEADERSHIP TEAM MEMBERS TO
LOOK THEIR AREA AND WHERE DO WE
HAVE FUTURE ADVANTAGES THAT WE
COULD PUT BASE FUNDING TO,
BECAUSE FUNDING THIS YEAR STAYS
WITH THE NEW PROGRAM IN
PERPETUITY.
HOPEFULLY.
AT THE DIRECTOR'S DISCUSSION.
[LAUGHTER]
THESE FUNDS HAVE BEEN USED TO
EXPAND OUR INTERNATIONAL ENGAGE
AM, TO STRENGTHEN OUR SECURITY
POSTURE, TO FOOF THE OR
REORGANIZEERATION AND IMPROVE
MANAGEMENT STRUCTURE AND SOME OF
OUR KEY DIVISIONS, TO IMPROVE
EVIDENCE BASED DECISION MAKING
ABILITY, TO ADDRESS CRITICAL
STAFFING NEEDS IN SEVERAL AREAS,
AND TO REDUCE UNNECESSARY
REDUNDANCY ACROSS OUR
COLLECTIONS AND RECOGNIZING THAT
SOMETIMES WE DO NEED SOME
REDUPPEDDANCY BUT WE WANT TO
REDUCE UNNECESSARY REDUNDANCY,
ENHANCE POLICY AND LEGISLATIVE
CAPACITY AND INVEST IN BETTER
UNDERSTANDING OF OUR STAFF
EXPERIENCES, WE WORK THROUGH THE
RACIAL AND ETHNIC EQUITY PLAN
AND OUR NLM'S IDEA AND COUNCIL
AND FUTURE OF WORK COUNCIL.
SO IT WAS WONDERFUL TO HAVE THIS
AMOUNT OF MONEY AVAILABLE TO
DISTRIBUTE.
WE CONTINUE TO INVEST IN BASE
PRODUCTS AND WE CONTINUE TO
INVEST IN THE RESOURCES NEEDED
TO DO COMPLETE THE RENOVATION
WHICH WE HOPE TO BRING GOOD NEWS
TO ABOUT IN SEPTEMBER, ABOUT YOU
WE WILL NOT HAVE THE FULL
RENOVATION DONE BY THEN.
LET ME STOP NOW AND TAKE JUST A
MEMORY CLONE TONIGHT GIVE MY
GREETINGS TO OUR NEW BOARD
MEMBERS.
THE PROCESS OF APPROVAL IS LONG
AND I APPRECIATE THE TENACITY OF
DRS. CLARK, KATZ AND WALKER,
WELCOME OUR NEW OFFICIO MEMBERSA
AS THEY ARE APPOINTED.
WE ACKNOWLEDGE THE OUTGOING
BOARD MEMBERS, THEY'VE BOTH BEEN
INCREDIBLE ASSETS TO OUR TEAM.
I WILL MISS THEIR PARTNERSHIP
AND I WILL MISS THEIR HUMOR
MPLET WE HAVE NEW NOMINEES THAT
HAVE JOINED US TODAY,
DR. [INDISCERNIBLE], THEY WILL
BE OFFICIALLY APPOINTED OVER THE
NEXT YEAR.
THE PROCESS REQUIRES SEVERAL
STEPS, THE FIRST STEP OF THE
PROCESS IS COMPLETED.
WITH RESPECT TO THE NATIONAL
LIBRARY OF MEDICINE'S PERSONNEL,
AND A FEW QUICK UPDATES, WE'VE
SEEN RETIREMENTS THIS YEAR AND
DEPARTURES, DR. LISA LANG HAS
BEEN WITH THE NATIONAL LIBRARY
OF MEDICINE FOR ALMOST 20 YEARS
AND RETIRED FROM THE LIBRARY
OPERATIONS, DR. JAN LEE A
PROGRAM OFFICER AND EXTRAMURAL
PROGRAMS AND DR. --I'M GOING TO
SAY IT WRONG AGAIN, I'M SORRY.
--RAVICHANDRAN HAS LEFT OUR
PROGRAM AND DR. LOU HAS BECOME
THE NEW DIRECTOR, THIS
REPRESENTS A FORMALIZATION AND
TRANSFORMATION OF COMPUTER
SUPPORT TO LOOK AT COMPUTER AS A
SCIENTIFIC SUPPORT SERVICE.
WE'RE PLEASED ABOUT THAT AND NOW
I TURN TO [INDISCERNIBLE].
>>THANK YOU PAT EXPE GOOD
MORNING TO EVERYONE I WANT TO
PROVIDE SOME BRIEF POLICY AND
LEGISLATIVE UPDATES AS ALWAYS.
>>DO YOU WANT ME TO SHARE OR
YOU SHARE.
>>CAN YOU SHARE, TELL ME WHEN
TO GO.
>>AS ALWAYS I ENCOURAGE YOU TO
READ THE WRITTEN UPDATE, WE
PROVIDE IT FOR MORE DETAIL AND
AS WELL AS INFORMATION.
SO FIRST I WANT TO HIGHLIGHT A
COUPLE POLICY ACTIVITIES THAT
EITHER NLM HAS BEEN INTIMATELY
ENGAGED IN OR OUR INTEREST TO
NLM FIRST OFF.
FIRST ON FEBRUARY 21st WE
RELEASED INFORMATION FOR THE
PUBLIC COMMENT, THEY WERE
WELCOME THROUGH APRIL 24th.
IN ADDITION NIH HELD A PUBLIC
LISTENING SESSION ON APRIL 12 TO
HEAR FROM STAKEHOLDERS ON THE
PLAN.
IN RESPOND TO THE REQUEST FOR
INFORMATION, NIHR RECEIVED MORE
THAN 130 COMMENTS FROM A
DIVERSITY OF STAKEHOLDERS, THOSE
COMMENTS ALONG WITH THE COMMENTS
THAT WE HEARD DURING THE
LISTENING SESSION WILL BE TAKEN
INTO CONSIDERATION AS NIH MOVES
TOWARD--PROPOSED RULE FOR PUBLIC
COMMENT.
THIS RULE WOULD IMPLEMENT
ADDITIONAL PROVISIONS OF THE
21st CENTURY CURES ACT RELATED
TO ELECTRONIC REPORTING.
IT ALSO MODIFYS--SORRY EXPAND
EXCEPTIONS TO THE INFORMATION
BLOCKING REGULATIONS AND
PROPOSES ADOPTING USCDA VERSION
3 TO REPLACE VERSION 1 AND
SEVERAL ADDITIONAL CERTIFICATION
CRITERIA AND UPDATING SOME
STANDARDS.
COMMENTS TO THAT RULE ARE DUE BY
JUNE 20th AND HAD THEN IN
ADDITION I WANTED TO HIGHLIGHT
SOME 2024 APPROPRIATION UPDATES
AS PATTY MENTIONED, THE
PRESIDENT'S BUDGET REQUEST WAS
RELEASED EARLY MARCH, FOLLOWED
BY THE RELEASE OF NLM'S CONGRESS
ALGORITHMS JUSTIFICATION AND THE
NIH BUDGET REQUEST IN MIDMARCH.
OUR BUDGET REQUEST IS $443.
IT INCLIEWTDS A 48.6 BILLION
DOLLARS FOR THE BASE BUDGET
ABOUT A BILLION DOLLAR INCREASE
FROM THE 2023 ENACTED LEVEL AND
2.5 BILLION DOLLARS FOR ARP A H.
I ENCOURAGE TO YOU READ THIS AS
IT DOES A GREAT JOB HEIGHT
LIGHTING OUR WORK HIGHLIGHTING
ACCOMPLISHMENTS AND SUMMARIZING
PRIORITIES.
BUT IN ADDITION I WANT TO NOTE
THAT NLM'S WORK AND
CONTRIBUTIONS TO NIH'S
PRIORITIES ARE HIGHLIGHTED IN 2
CROSS CUTTING SECTIONS OF THE
NIH BUDGET REQUEST.
ONE OF THEM IS FOCUSED ON THE
NIH ACTIVE TRACE PROGRAM THAT IS
THE ACCELERATING COVID-19
THERAPEUTIC INTERVENTIONS
PROGRAM, SPECIFICALLY TRACKING
ASSISTANCE AND COONA VIRUS
EVOLUTION WHICH NCBI HAS BEEN
VERY INVOLVED WITH AND THE
SECOND IS OUTLINING MAJOR
CONTRIBUTIONS FROM INSTITUTES
AND CENTERS WITH BUDGETTINGS
LESS THAN 1 BILLION DOLLARS, IT
HIGHLIGHTS NLM PROGRAMS AND
INITIATIVES RELATED TO OUR
RESEARCH ON AI AND MACHINE
LEARNING, TOOLS TO SUPPORT
GENOMIC RESEARCH AND EFFORTS TO
IMPROVE RESEARCH RIGOR THROUGH
THE USE OF COMMON DATA ELEMENTS.
SO THE RELEASE OF PRESIDENT'S
BUDGET KICKS OFF THE 2024
APPROPRIATIONS PROCESS WHICH IS
UNDERWAY AND DR. TABAK HAS
ALREADY PROVIDED TESTIMONY AT 2
BUDGET HEARINGS OF 1 ON
APRIL 19th BEFORE THE HOUSE
LATER AND HHS SUBCOMMITTEE AND
THE OTHER ON MAY FOURTH, THE
SENATE APPROPRIATIONS LABOR HHS
AND APPROPRIATION SUBCOMMITTEE.
AND WITH THAT I WILL PASS IT
OVER TO PATTY.
>>I WANT TO THANK TERESA JERRY
AND THE COMMUNICATION STAFF AS
WE PREPARED DR. TABAK FOR HIS
HEARINGS, IT WAS MLM'S
RESPONSIBILITY TO PROVIDE SCWRS
TO IMES HE MIGHT BE ASK.
WE PROVIDED FULL DOCUMS AND
UPDATES BECAUSE THERE ARE MANY
THINGS THAT ARE CHANGING IN OUR
MOTION ABOUT PUBLIC ACCESS AND
ACCESS TO SEQUENCE BASED DATA
AND ABOUT OUR ABILITY TO MEET
THE PUBLIC'S NEED FOR
INFORMATION.
SO, OUR--WE WERE ABLE TO
SHOWCASE AND WORK WITH DR. TABAK
FOR HIS RESENTATIONS.
--I ALSO ENCOURAGE YOU TO TO
FOLLOW THE CLIRCHG TO THE
CONGRESSIONAL JUSTIFICATION
RESEARCH, NLM RESEARCH
JUSTIFICATION, THIS IS A REPORT
WE PRODUCE ANNUALLY FOR CONGRESS
THAT SPAIN WHAT IS WE DO WITH
THE RESOURCES WE GO AND IT'S
PARTICULARLY CONCISE SUMMARY OF
THE CRITICAL THINGS THAT WE'VE
BEEN WORKING ON, OUR TEAM WORK'S
VERY HARD TO MAKE IT READABLE
AND UNDERSTANDABLE TO THE
GENERAL PUBLIC SO I THINK YOU
WILL FIND THIS QUITE
INTERESTING.
AND NOW I WOULD LIKE TO JUST
REMIND YOU, YOU CAN REACH ME,
I'M STILL--AT NIH--MY NIH
E-MAIL, RATHER AND OUR MEETINGS
ON THE MEZZANINE BLOG CONTINUES
TO PUBLISH.
I INVITE BOARD MEMBERS WHO HAVE
AN INTEREST FOR WRITING IF ARE
FOR PUBLICATION CONSIDER WRITING
A BLOG POST ABOUT CRITICAL
ISSUES.
WE HAD MANY GUEST BLOGGERS AND
REALLY APPRECIATE THEIR
PRESENCE.
AND AND NOW I WANT TO TURNOVER
TO JERRY SHEEHAN WHO HAS BEEN
WORKING WITH THE FUTURE OF
OVERSIGHT HERE WITH JERRY PALMER
AT THE BOARD OF REGENTS.
>>THANK YOU.
SO WE'VE BEEN WORKING WITH
RICHARD PALMER, VALERIE FLORENCE
FROM OUR INTRAMURAL RESEARCH
PROGRAM AS WELL AS MIKE
[INDISCERNIBLE] OUR ACTING
DEPUTY DIRECTOR FOR OPERATIONS
AND INTERNAL AUDIT NOVATIONS
RELATE TD TO AS PATTY SAID
OVERSIGHT OF OUR EXTRAMURAL
PROGRAMS IN PARTICULAR.
AND I WANT TO RECOGNIZE THAT AS
WE'RE PREPARING TO BREAK OUT
INTO OUR WORKING GROUPS, I THINK
WE HAD PUT THOSE IN PLACE WITH
AN AGREEMENT THAT WE REVIEW THEM
PERIODICALLY TO MAKE SURE THAT'S
THEY'RE EFFECTIVELY SUPPORTING
THE OVERSIGHT OF NLM AND THE
RANGE OF OUR ACTIVITIES.
I WILL NOTE THAT MAYBE FOR THE
LAST YEAR, LAST YEAR AND CHANGE,
WE HAVE BEEN OPERATING WITHOUT
AN ESTABLISHED GROUP THAT
FOCUSES ON NLM'S EXTRAMURAL
PROGRAMS.
ALTHOUGH WE CALL A FEW OF YOU IN
TO SERVICE ON AN ODORS HOC BASIS
FOR EARLY APPROVAL FOR GRANT
AWARDS AND GIVEN THAT
EXPERIENCE, I THINK WHAT WE LIKE
TO DO IS FOR THE BOARD TO
CONSIDER ESTABLISHING IT
EFFECTIVELY, REESTABLISHING A
SUBCOMMITTEE THAT WILL PROVIDE
FUNCTIONS ON FOCUS SPECIFIC ON
NLM'S EXTRAMURAL PROGRAMS, IT
WOULD PROVIDE EARLY CONCURRENCE
AND FOCUS ON CERTAIN ITEMS THAT
NEED SPECIAL CONSIDERATION FROM
THE BOARD.
CONSIDERATION OF FOREIGN
APPLICATIONS, LARGE AWARDS,
PROJECT WITH SOME UNRESOLVED
ISSUES RELATED TO IRB APPROVALS
AND INCLUSION, AND IT'S ALSO THE
GROUP THAT WOULD HELP US IN
DEVELOPING OUR EXTRAMURAL
OPERATING PROCEDURES.
SO WE SEE THIS SUBCOMMITTEE AS
SOMETHING THAT WOULD COMPLEMENT
BOTH THE EXISTING RESEARCH
FRONTIERS WORKING GROUP WHICH WE
SEE IS PROVIDING BROADER
RESEARCH DOMAINS OF RELEVANCE TO
NLM WHETHER THOSE ARE IN OUR
INTRAMURAL OR EXTRAMURAL
PROGRAMS.
WE'RE ALSO COMPLEMENT WHAT
HAPPENS WITH OUR BOARD OF
SCIENTIFIC COUNSELORS.
WHICH IS YOU PROBABLY PROVIDE
INDEPTH REVIEWS OF INDIVIDUAL
INTRAMURAL RESEARCH PROGRAMS AND
IN FACT, WE WILL BE REPORTING
OUT TO YOU, TO THIS BOARD AT
YOUR MEET NOTHING SEPTEMBER.
SOY WHAT WE'RE PROPOSING IS THAT
OUR EXTRAMURAL PROGRAM STAFF,
DR. RICHARD PALMER AND HIS TEAM
WE DRAFT FOR YOU AND UPDATE OF
OUR GRANT OPERATING PROCEDURES
THAT OUTLINE THE EXPECTATIONS
AND THE ROLE OF THE NEW
SUBCOMMITTEE IN OUR EXTRAMURAL
PROGRAMS.
AND THE RELATIONSHIP OF THE
SUBCOMMITTEE TO THE FULL BOARD
OF REGENTS AND THE IDEA IS THAT
THIS DRAFT WOULD BE CONSIDERED
BY A NEW SUBCOMMITTEE AND
BROUGHT TO THE BOARD FOR
APPROVAL IN SEPTEMBER.
SO WE KNOW THERE ARE A FEW
LOGISTICAL ITEMS AS WELL AS
SUBSTANTIVE 1S TO WORK OUT.
IN TERMS OF WHETHER THAT
SUBCOMMITTEE WOULD MEET, WHO
SHOULD BE ON IT AND WE NOTE THAT
WE HAVE ONLY A LIMITED NUMBER OF
BOARD MEMBERS AND WE KNOW THAT
YOU ALL HAVE LIMITED TIME AND
THERE'S ONLY SO MANY WAYS WE CAN
DIVIDE YOU UP DURING THE COURSE
OF AN INDIVIDUAL MEETING BUT
REMEMBERING THAT WE WILL BE
PLANNING FOR AN IN-PERSON
MEETING IN SEPTEMBER WHICH MIGHT
GIVE US A BIT MORE TIME FOR
WORKING AROUND THE EDGES OF THE
MEETING.
SO I THINK THAT THAT'S
ESSENTIALLY OUR PROON POSALS,
WHAT WE ARE PROPOSING TO DO IS
ASSEMBLE THE SUBCOMMITTEE OVER
THIS SUMMER, KIND OF WILL
WELCOME YOUR SUGGESTIONS FOR
THOSE WHO WOULD LIKE TO BE PART
OF THIS COMMITTEE, WE WILL HAVE
TO DO BALANCING IN TERMS OF TIME
AND DIVISION OF LABOR ACROSS
DIFFERENT GROUPS AND SO FORTH,
AND WE WILL CONTACT INDIVIDUAL
MEMBERS OVER THE SUMMER TO
INVITE YOUR PARTICIPATION.
SO I DON'T KNOW IF RICHARD OR
MIKE OR VALERIE, IF YOU WANT TO
ADD ANY OTHER THOUGHTS TO THAT
PROPOSAL TO YOU BUT WE CAN TAKE
THIS DISCUSSION UP HERE FOR NOW,
FOR THE FULL DIRECTOR'S REPORT
WE MIGHT HAVE DISCUSSION LEADING
IN THE RIGHT RESEARCH FRONTIERS
GROUP WHICH WILL MEET JUST AFTER
WE FINISH WITH THIS AGENDA ITEM.
>>THANK YOU VERY MUCH.
>>THAIRNG YOU.
LET ME TURN TO HEIDI, I WE HAVE
15 MINUTES FOR DISCUSSION, BUT
LET ME KNOW WHEN WE NEED TO
ADDRESS.
>>JOE FRANCIS HAD A QUESTION, I
THINK YOU'RE IN THE AIRPORT SO I
CAN READ IT.
>>YEAH, I'M HERE, KIJUST SAY,
WHEN YOU WERE TALKING ABOUT THE
PROARMINGZ RIGHT AFTER THE
DISCUSSION ON TECHNOLOGY
GOVERNANCE, I DIDN'T KNOW
WHETHER YOUR APPROPRIATION
ALLOWS FLEXIBILITY TO MAKE
COMPARATIVE INVESTMENTS AND
OPERATIONS VERSUS TECHNOLOGY.
WE HAVE SEVERAL BUCKETS AND THAT
CREATES PARTICULARLY UNIQUE
CHALLENGES FOR VA, WAS JUST
CURIOUS.
I PROBABLY SHOULD KNOW THIS
ALREADY, BUT SORRY.
>>I'M GOING TO LOOK TO THE BOSS
FIRST TO THE QUESTION
TECHNICALLY AND THEN I WILL GIVE
YOU SOME INFORMATION.
>>SO, JOE, THANK YOU FOR THE
QUESTION AND I WAS SURPRISED TO
LEARN THAT THE I.T.
APPROPRIATIONS FOR THE VA IS
SEPARATE THAN PROGRAM
OPERATIONS, I FOUND OUT
YESTERDAY DURING A PHONE CALL.
THE--I ENCOURAGE YOU TO LOOK AT
THE CONGRESSIONAL JUSTIFICATION
BECAUSE IT LAYS IT OUT NICELY.
SO THERE ARE BUCKETS IN TERMS OF
HOW FUNDS ARE SPENT ACROSS
EXTRAMURAL, INTRAMURAL AND THEN
WHAT'S CALLED RESEARCH
MANAGEMENT AND SUPPORT AND THIS
PROPOSES WHAT THIS INCREASE OR
CHANGE WOULD LOOK LIKE FROM YEAR
TO YEAR, MORE SPECIFICALLY THAN
THAT THERE IS FLEXIBILITY IN
TERMS OF THE NUMBERS OF GRANTS
AWARDS OR WHAT MIGHT GO TO A
PARTICULAR INFORMATION SERVICE
FOR EXAMPLE.
>>SO JOE, WE HAVE 1 RESTRICTED
AREA AND THAT'S A $2,000,000.02
YEAR FUND.
IT'S 2 YEAR MONEY THAT CAN ONLY
BE SPENT ON I.T. SO FOR REASONS
THAT ARE HISTORICAL AND SOMEONE
HERE PROBABLY KNOWS BETTER THAN
I, AT 1 POINT THE NLM WAS GIVEN
FLEXIBILITY IN I.T. FUNDS NOW
YOU AND I BOTH KNOW WE KNOW THAT
2 MILLION IS NOT VERY MUCH BUT
IT IS FLEXIBLE INVESTMENT AND WE
TEND TO USE IT FOR SPECIAL
PURPOSE INVESTMENTS, THIS YEAR
WE'RE LOOKING AT REBUILDING OUR
UNIVERSAL POWER SUPPLY.
SO THAT'S THE KIND OF THING WE
WOULD USE BUT AS CAN YOU IMAGINE
FUNDING, OUR DEMAND FOR FUNDS
FOR I.T. HAS GROWN FASTER THAN
ANY APPROPRIATION IS GROWING,
NIH DOES HAVE A HUGE AMOUNT OF
FLEXIBILITY.
IN SOME WAYS AN ADVANTAGE BUT
SOME WAYS A DISADVANTAGE, YOU
HEARD ME GIVE THE REPORT EARLIER
FOR THE NIH, YOU WE WIDELY
RECOGNIZE THE LOCAL NEEDS OF
ICs AND INSURING THAT THE
BAILS FUNCTIONALITY OF THE NIH
ARE SOMETIMES AT ODDS WITH EACH
OTHER AND WE KNOW THAT NIH
SPENTS 1.8 BILLION ON
INFORMATION TECHNOLOGY AND THAT
IS GOVERNED BY THE
ACCOUNTABILITIES BUT NOT
PRESPECIFIED IN TERMS OF HOW
MUCH FUNDS ARE ALLOCATED OR
APPROPRIATED.
THE FUNDS BECOME USEFUL FOR BOTH
SERVICE SUPPORT AS WELL AS
TECHNOLOGY AS WELL AS SOFTWARE
LICENSES, WE ARE LOOKING FORWARD
TO THE DAY THAT EVERY DOLLAR
SPENT ON I.T. AT NIH ADVANCES
THE MISSION IN A SYSTEMATIC AND
COORDINATED WAY.
I'M WORKING WITH A VERY SMALL
GROUP OF LEADERSHIP PEOPLE
DR. JOHNSON BEING DEPUTY
DIRECTOR FOR NIH MANAGEMENT, I
HAVE WORKED WITH [INDISCERNIBLE]
WHO IS AN INTRAMURAL RESEARCH
SPECIALIST AND INFORMATION
TECHNOLOGY.
WE WANT TO PRESENT TO THE
IC DIRECTORS A PLAN FOR MOVING
TOWARDSA I MORE RATIONAL
APPROACH THAT EMBRACES LIGHTLY,
STANDARDS THAT PROVIDE
OVERSIGHT, RIGHT NOW OF THE 1.8
BILLION ONLY 400 MILLION IS
DIRECTLY ASSOCIATED WITH THE
CENTER FOR INFORMATION
TECHNOLOGY AND THAT HAS A
SPECIFIC LINE OF OVERSIGHT.
THE REST OF IT HAS NO ACCORD
NATION AND NO OVERSIGHT SO WE'RE
WORKING TO REDUCE A LITTLE BIT
OF FLEXIBILITY, I BELIEVE.
AND OUR NEXT STEP WILL BE MOVING
THAT FRANKLY SOCIAL AND
POLITICAL CONVERSATION FORWARD
TO THE NIH LEVEL.
IT'S WELL KNOWN, WE HEAR MANY,
MANY WORDS OF SUPPORT UNTIL WE
GET TO TALKING ABOUT REASSIGNING
OR REALIGNING DIVISION SPECIFIC
OR IC-SPECIFIC INVESTMENTS, AND
THAT'S WHERE IT GETS TOUCHY.
THIS IS 1 OF THE MANY AREAS WE
WILL MISS JERRY IN BECAUSE WE
WAS EXCELLENT AT ADDRESSING
THOSE QUESTIONS AND ANSWERS.
ANOTHER 1 HAS TO DO WITH PLANS
TO DEVELOP RESEARCH SUPPORT
TOOLS THAT ARE SHARED WITH THE
INTRA AND EXTRAMURAL
COMMUNITIES.
I WILL ASK STEVE TO COMMENT ON
THIS BECAUSE HITION GROUP HAS
BEEN WORKING A LOT IN THIS AREA
BUT THE NIH IS TRYING TO WALK A
FINE LINE BETWEEN USING A TECH
TRANSFER PROCESS THAT MAKES OUR
RESEARCH TOOLS MUCH MORE
SHAREABLE IN A MORE SYSTEMATIC
WAY AND ALLOWING OUR
INVESTIGATORS TO BE BE CREATIVE
AND INVENTIVE RATHER THAN
SPENDING TIME ON ENGINEERING IT
AND BASICALLY COMMERCIALLY
HARDENING UP THE TOOL SERVICES.
WE HAVE SPECIAL FUNDING THAT
ALLOWS FOR THAT ACROSS THE NIH,
THERE ARE SPECIAL INIAATIVES
THAT ALLOW FOR INVESTIGATORS
AROUND THE COUNTRY WHO DEVELOPED
A SOLUTION THEY WOULD LIKE TO
HAVE INDUSTRY HARDENED.
THEY CAN ASK FOR ADDITIONAL
FUNDING SUPPORT FOR THAT.
WE ALSO WITHIN THE NLM DO MAKE
MOST OF OUR TOOLS AVAILABLE SO I
WILL TURN TO STEVE.
>>THANKS, PATTY.
WE ARE LOOKING AT TOOL
DEVELOPMENT IN NCBI FOR
EXTRAMURAL USE THAT'S REALLY
CENTERED ON THE CLOUD AND PART
OF OUR AMBITION IS TO DEVELOP A
TECHNOLOGY PLATFORM THAT'S
LARGER THAN THE NCBI ECOSYSTEM
AND OUR PARTNERS IN PUBLIC
HEALTH SURVEILLANCE RIGHT NOW.
THIS IS DATA THAT'S BEING USED
INTERNATIONALLY FOR SURVEILLANCE
AND GOES THROUGH STANDARD
ANALYSIS STEPS ON SEQUENCE DATA
TRANSFORMATION AND TURNING IT
INTO STANDARDIZED VARIANTS AND
LOOKING AT STANDARDIZED
PROPERTIES OF DYNAMICS.
OUR HOPE IS THAT WE CAN SHARE
THIS APPROACH THAT WE DEVELOPED
AS PART OF THE ACTIVE TRACE
PROGRAM, WHICH WAS JUST
MENTIONED WITH INTERNATIONAL
PEERS AND CREATE SOME CAPACITY
DEVELOPMENT AND OTHER COUNTRIES.
AND SO EXTRAMURAL, I'M THINKING
VERY BROADLY AND THIS MIGHT NOT
JUST BE THE RESEARCH COMMUNITY
AT ALL, SO IT MIGHT BE THE
PUBLIC HEALTH SURVEILLANCE
COMMUNITY AND AGAIN IT'S REALLY
PREMISED ON USING COMMERCIAL
PLATFORMS AS A CHAN TOLL PUT
STANDARD SOFTWARE OUT THAT CAN
BE SHARED GLOBALLY, ADAPTED
LOCALLY AND CREATE COMMUNITIES
OF PRACTICE.
>>COULD YOU COMMENT BRIEFLY ON
CGR?
>>IT'S A COMPARATIVE GENOMICS
RESEARCH, IT'S AN NIH PROJECT
THAT IS DEVELOPING THE SAME KIND
OF TOOL SYSTEMS IN A MORE
SPECIALIZED CASE WHICH IS AROUND
COMPARATIVE GENOMIC ANALYSIS SO
THIS IS TRYING TO DO QUALITY
CONTROL, CLEANING, REMAPPING
AROUND REFERENCE GENOMES SO THIS
IS EUKARYOTIC GENOMES FROM
EUKARYOTIC GENOME AND WE'LL GET
INTO FUNGI IN THE NEXT COUPLE
YEARS.
BUT THERE ARE STANDARD TOOLS
THAT CAN BE USED TO MAKE THE
COLLECTION OF REFERENCE
ORGANISMS MUCH LARGER THAN THE
SMALL NUMBER OF HOST ORGANISMS
THAT ARE RIGHT NOW BEING MANAGED
BY ORGANISMS SPECIFIC DATABASES.
THERE'S PROBABLY 2000 ORGANISMS
THAT ARE RELEVANT TO RESEARCH
AND SO USING STANDARD TOOLS TO
ANNOTATE THEM, TO IDENTIFY
CONTAMINATING SEQUENCE, PROPER
ASSEMBLIES, THESE ARE AGAIN
SOFTWARE TOOLS WE'RE BUILDING
AND SHARING WITH THE COMMUNITY
SO THAT IT EITHER EXPEDITES THE
SUBMISSION OF NEW DATA AND MAKES
IT CLEANER OR CREATES LEVERAGED
ANALYSIS SO THAT OTHER
COMMUNITIES CAN DO THEIR OWN
REANALYSIS OF THE DATA.
SO WE'RE WORKING WITH PLANT AND
ANIMAL GENOMES, COMMUNITIES,
INTERNATIONALLY DOMESTICALLY, TO
ADVANCE NOT JUST THE
SPECIFICATIONS FOR THE TOOLS,
BUT HOW TO USE THEM AND I GUESS
FOR FUTURE TOOLS GOING FORWARD.
>>THANKS.
PHILLIP?
>>YES, ON THE OVERSIGHT ASPECT
OF INTRAMURAL FUNDING, I WAS
JUST WONDERING IF THERE'S BEEN
ANY DISCUSSION MORE OR LESS FROM
DIANE AND HER EXPERTISE IN AI ON
THE POTENTIAL ROLE GOOD OR BAD,
ETHICAL UNETHICAL OF GENERATIVE
AI IN THE GRANT PROCESS.
ONE, THINK OF IT FROM A
REVIEWERS PERSPECTIVE ON THE
QUALITATIVE RESPONSES OR EVEN,
2, IF THERE'S A WAY THAT MAYBE
INTERNAL GENERATIVE AI PRODUCTS
CAN ALSO HELP WITH THE GRANT
PROCESS SPECIFICALLY WHEN IT
COMES TO THAT BACKGROUND, THAT
FORMATION.
SO THERE'S SO MANY DISCUSSIONS
WE'RE HAVING ON CAMPUS HERE TOO
SO I THOUGHT I WOULD POSE THE
SAME QUESTION HERE.
>>BEFORE DIANE SPEAKS I WANT TO
LET YOU KNOW THAT THE NIH HAD
BEEN USING AI TECHNIQUES MOSTLY
MACHINE LEARNING IN THE GRANTS
PROCESS FOR SEVERAL YEARS.
AN ALLORA RODRIGUEZ RHYTHM BUILD
BY THE CENTER FOR MEDICAL
SCIENCES HAS THE ABILITY TO DO
NATURAL LANGUAGE PROCESSING TO
EVALUATE TD TOPIC OF A GRANT AND
THEN USE A MATCHING ALGORITHM TO
MATCH IT TO THE PROPER--TO THE
PROPER REVIEW TEAM AND THE
PROPER REVIEWER WHICH ACTUALLY
SPEEDS UP THE PROCESS OF
ASSIGNING GRANTS TO REVIEWERS
FROM SEVERAL WEEKS TO SEVERAL
DAYS.
SO AI AS AN INTERNAL OPERATION
IS NOT NEW BUT YOUR QUESTIONS
FOR VERY TIMELY SEE I WILL TURN
IT TO DIANE.
SHE'S BEEN THINKING ABOUT THIS.
>>YEAH, AND JUST TO ADD ON TO
PATTY'S COMMENTS, WHEN I WAS
OVER AT NIAID, WE ACTUALLY USED
PUBLIC ACCESS MED THE API FOR
LOOKING AT CONFLICT OF INTEREST
AND ANYBODY THAT'S PUBLISHED
WITH THE GRANTEES, PROPOSED
GRANTEES TO MAKE SURE WE DIDN'T
HAVE ANY CONFLICT OF INTEREST
THERE AS WE WERE TRYING TO
SELECT REVIEWERS, BUT, PHILLIP
TO ANSWER YOUR QUESTION, 1 OF
THE MAIN THINGS AND I WILL TALK
ABOUT THIS A BIT MORE THIS
AFTERNOON IN MY PRESENTATION, IS
THAT WHEN YOU PUT SOMETHING INTO
THOSE CHAT BOXES, IT NOW BECOMES
PART OF THE LEARNINGS ALGORITHM
AND THAT IS SOMETHING THAT
OTHERS MEETING WITH THE GROUP OF
EDITORS AND WE WERE HAVING
CONVERSATIONS ABOUT THAT AND
PEOPLE DIDN'T ACTUALLY REALIZE
THAT WHEN YOU PUT SOMETHING INTO
THAT BOX, IT NOW COULD IMPINGE
ON PRIVACY OR EVEN INTELLECTUAL
PROPERTY RIGHTS.
SO, YOU KNOW READ THAT FINE
PRINT IN THOSE TERMS AND
CONDITIONS WHICH WE ALL DO WHEN
WE DOWNLOAD APPS AND THINGS.
COULD WE USE IT TO YOU KNOW GROW
OUR OWN HUMAN GROWN TYPE OF CHAT
BOX THAT YOU KNOW WE COULD
PROTECT HOW IT'S GROWING AND
THINGS LIKE THAT?
I THINK THERE'S AN OPPORTUNITY
FOR THAT.
YOU KNOW IT ALSO--THERE'S A HUGE
INVESTMENT IN SCRAPING AND YOU
KNOW KEEPING THAT UP TO DATE SO
I THINK WE'RE AT THE TIP RIGHT
HERE AND HAVING FURTHER
DISCUSSIONS IS WHERE WE WILL
HAVE TO GO WITH IT.
SO I SEE A LOT OF PROMISE AND I
SEE A LOT OF POTENTIAL
LIMITATIONS, BUT I'M THINKING
ABOUT, YOU KNOW HOW COULD WE DO
MORE ROUNDED SUMMARIES FOR
AUTHORS AND REVIEWERS THAT COULD
ACTUALLY BE MORE HELPFUL AND
THERE'S SOME SENTIMENT INDEXES
THAT YOU COULD HELP TO MAKE THEM
KINDER RESPONSES AS WELL IN YOUR
ITERATIVE PROCESS OF ASKING
QUESTIONS.
AND THEN THE OTHER THING IS
REALLY FOR TRANSLATIONS, COULD
WE USE IT TO DO LANGUAGE
TRANSLATIONS, AND MAKE SUMMARIES
FOR REVIEWS A LITTLE BIT EASIER
FOR AUTHORS OR GRANTEE
SUBMITTERS, SO WITH
THAT--THANKS--
>>MY OWN INSTITUTION IS
STRUGGLING WITH THE FACT THAT WE
JUST CAN'T AFFORD TO STORE A LOT
OF GENOMIC DATA INDEFINITELY.
ESPECIALLY AS IT'S GOTTEN LARGER
AND LARGER AND I WOBDER HOW BOTH
NCBI AND OTHER TYPES OF DATA
THIS IS REALLIA A BROADER
QUESTION, THINKS ABOUT WHETHER
EVERYTHING GETS STORED
INDEFINITELY, VERSUS THERE ARE
THINGS THAT YOU DECIDE NO 1 IS
USING ANYMORE OR
COSTING--COSTLY, SO YOU ACTUALLY
GET RID OF, YOU KNOW DATA WHICH
HAS GOT TO BE A HARD DECISION TO
MAKE AND I'M JUST CURIOUS HOW
YOU THINK ABOUT THAT BROADLY AND
MAYBE IF YOU WANT TO PUNT TO
STEVE TO THINK ABOUT IT ON THE
GENOMICS FRONT?
>>I HEAR THE AT THE LIBRARY IT
COSTS MORE TO GET RID OF STUFF
THAN TO KEEP IT.
ON CAMPUS WE'VE BEEN THINK BEING
SMART COLLECTING AND TIME
LIMITED, AND STEVE KNOWS MORE SO
GO AHEAD STEVE.
>>YEAH, THANKS HEIDI.
I THINK IN THE DIGITAL SPACE FOR
SEQUENCES, WE HAVE A CURSE AND A
BENEFIT AND THE CURSE IS THAT
THERE'S A LOT OF IT AND THESE
INSTRUMENTS ARE ALL AROUND THE
WORLD SO EVERYTHING'S GETTING
SEQUENCED AND IT DOES MAKE THE
PURPOSE OF COLLECTING, I THINK
THE VALUE AND QUESTION IS
DIFFERENT THAN IT WAS 10 YEARS
AGO.
IT'S NO LONGER ABOUT RARE THINGS
THAT WE STAIR AND SHORE BECAUSE
THEY'RE EXPENSIVE TO RECREATE,
IT'S MORE ABOUT METHODOLOGY AND
SAVING THINGS THAT UNDERWRITE
AND DOCUMENT SCIENTIFIC PROCESS
SO THAT THE BENEFIT OF DIGITAL
PROPERS MEANS I THINK WE CAN
LEVERAGE SOME OF THE AFFORDABLE
CLOUD STORAGE LIKE DEEP FREEZE
ARCHIVES, AND SOME OF THE LOW
PERFORMANCE AFFORDABLE
STRATEGIES FOR OUR ORIGINAL DATA
SO THAT'S WHAT WE'RE LOOKING AT
RIGHT NOW IS CAN WE MAKE A
SUSTAINABLE POSTURE FOR SRA IF
THE EXPECTATION IS WE CAN STORE
THE DATA BUT IT MIGHT TAKE YOU A
COUPLE DAYS TO GET IT BACK OUT
AND SERVED UP.
THERE'S STILL A HOT COFFEE,
THINGS THAT ARE UNPOURED AND
NEED TO BE MADE ACCESSIBLE NOW
BUT THAT LONG TAIL WE LOOKEDDA
AT THIS TIME, WE FOUND OUT IT IS
STILL RESTREEFED AND SOME THINGS
YOU THINK WOULDN'T GET
RESTREEFED OTHERS DON'T, CAN WE
USE MACHINE LEARNING TO
UNDERSTAND WHAT KINDS OF THINK
THISS AND WHAT ARE OF THE
PROPERS WE GET USED VERSUS
ORIGINAL DATA THAT'S JUST STEAL
AND NO LONGER VALUABLE.
SORRY, I GOT THESE INDENTATIONS
POPPING UP.
>>ALL RIGHT, WE ARE AT THE
QUARTER HOUR, SO I THINK IT'S
TIME FOR EVERYONE TO JOIN THE
BREAK OUT GROUPS AND WE WILL
HAVE AN HOUR LONG BREAK OUT
SESSION THEY ARE ALSO POSTED
THERE ON THE SCREEN WHERE YOU'RE
HEADED BUT I THINK YOU CAN HIT
JOIN.
THANKS EVERYONE.
>>WE WILL REJOIN OUR PUBLIC
MEMBERS WILL REJOIN AT 12:45
THIS AFTERNOON FOR MORE A PUBLIC
DISCUSSION AGAIN.
THANK YOU.
>>WE'RE GOING TO START WITH
THE WORKING GROUP REPORTS AND
DISCUSSION.
PERHAPS WE WILL GO IN THE ORDER
THAT THEY'RE LISTED ON THE
AGENDA SO I WILL START WITH THE
STRATEGIC PLANNING AND AS PART
OF ORIENTATION, I THINK ANN
VOLUNTEERED TO GIVE THE REPORT
OUT FOR THAT GROUP.
>>YEAH, BAPTISM BY FIRE.
>>RIGHT.
>>SO I WAS JUST LOOKING THROUGH
MY NOTES.
CAN YOU JUST--I JUST GOT THE
NOTES, I'M JUST GOING THROUGH
THEM.
>>NO WORRIES AND ACTUALLY IF
YOU WANT WHY DON'T WE MOVE ON TO
THE NEXT 1.
THERE'S NO PARTICULAR ORDER
HERE.
>>YEAH, THAT WOULD BE HELPFUL,
THANKS.
>>SO WHY DON'T WE START WITH
RESEARCH FRONTIERS.
DO WE HAVE SOMEONE WHO'S GOING
TO GIVE THAT REPORT OUT?
>>YEAH, I THINK IT'S ME, JIM.
READY?
OKAY, WELL, WE STARTED WITH A
PRESENTATION BY MICHELLE
[INDISCERNIBLE] DEPUTY DIRECTOR
OF ORGANISM MALINTERESTS GROUPS,
FOR THOSE THAT DON'T KNOW HER,
SHE WANTED TO ADDRESS THE ISSUE
OF DATA INTEROPERABILITY AND HOW
IT LIMITS THE BIOLOGICAL
SCIENCES AND SHE'S PROPOSING OR
DESCREEBING AN INTEGRATED
NATIONAL BIODATA FABRIC.
THE IDEA IS TO HAVE AN
INTEGRATED SEAMLESS API BASED
ENVIRONMENT OR WITH SERVICES AND
TECHNOLOGY, SO THAT'S DATA AND
ANALYTICS FOR MANAGING DATA LIFE
CYCLE AND SUPPORTING REUSE OF
DATA.
IT REQUIRES A GOVERNMENT
SOLUTION, WORKING WITH INDUSTRY,
ACADEMIA AND OTHER
NONGOVERNMENTAL ORGANIZATIONS.
AND HAS A NUMBER OF FEATURES, WE
DON'T HAVE TIME TO GO TO THEM
ALL HERE BUT PROVIDING BASICALLY
A LONG-TERM INFRASTRUCTURE
SUPPORT, USE OF FAIR STANDARDS
AND OTHER STANDARDS FOR
SUPPORTING USE OF DISCOVERY
REUSE OF DATA AND THEN WE
DISCUSSED, YOU KNOW THAT SOUNDS
GREAT, WHAT ARE THE STUMBLING
BLOCKS AND WE TALKED ABOUT A
NUMBER OF DIFFERENT THINGS THAT
THE SOLUTIONS NEED TO BE DRIVEN
BY COMMUNITY NEEDS THAT ARE JUST
BUILDING IT AND SAYING, WE BUILT
IT AND WAIT FOR PEOPLE TO COME
AND NOT NECESSARILY GOING TO
WORK.
BUT WE NEED TO LOOK FOR EXAMPLES
OF SOLUTIONS THAT HAVE WORKED IN
THE PAST AND 1 OF THEM IS THAT
THE GENERAL IDEA OF SHARING
HUMAN GENOME DATA, THE
DEVELOPMENT OF STANDARDS
PROVIDED A GOOD WAY FOR PEOPLE
TO EXCHANGE DATA SO THAT'S BEEN
VERY SUCCESSFUL.
IF YOU LOOK THEN AT PHENOTYPIC
DATA, MAYBE THAT'S BEEN LESS
SUCCESSFUL BECAUSE THERE'S SO
MANY STANDARDS TO CHOOSE FROM.
A COUPLE OF EXAMPLES WE POINTED
TO THAT ARE RELEVANT TO THE
STATEMENT, I WILL READ THESE
BECAUSE I COULDN'T MEMORIZE THEM
BUT THE NIH RESEARCH FOR
DISCOVERY AND DISCOVERY,
EXPERIMENTATION AND
SUSTAINABILITY AND HAS THE NICE
ACONIMPEDIMENTS STRIDES WHICH
HAS NIH TO STREAMLINE NIH DATA
BY PARTNERING WITH COMMERCIAL
PROVIDERS REDUCING PROCESS
BARRIER UTILIZING COMMERCIAL
CLOUD SERVICES.
THE OTHER IS THE GLOBA BIODATA
COALITION WHICH HAS PUT TOGETHER
A LIST OF RESOURCES, OUR
COLLECTION OF 37 RESOURCES WHO
THEY IDENTIFIED AS HAVING
LONG-TERM FUNDING AND
SUSTAINABILITY NEEDED, IS
CRITICAL FOR LIFE SCIENCE AND
BIOMEDICAL RESEARCH THROUGHOUT
THE WORLD.
AND THEN MICHELLE LISTED A
NUMBER OF OPPORTUNITIES, SO LET
ME JUST LIST THOSE VERY QUICKLY,
NLM DATABASES AND
[INDISCERNIBLE] PARTNERSHIPS TO
CREATE INTERCONNECTED FEDERATION
AND COOPINATION INVESTMENTS OF
THESE REPOSITORIES WITH OTHER
GEADGESS TO SUPPORT GLOBAL
BIODATA COALITION'S STRATEGIC
PLAN, TO ALIGN DATA SETS,
ESTABLISHED ONRAMPS TO,A LOW
WORKFORCE DEVELOPMENT FOR DATA
DRIVEN RESEARCH, CONVENIENT
COMMUNITIES THAT DEVELOP
STANDARDS CRETE CREATING
NATIONAL SYNTHESIS ANALYSIS AND
DATA REUSE AND TRAINING AND TO
CREATE A KNOWLEDGE NETWORK
PLATFORM FOR INTERCONNECTIVITY
AND SO THEN WE STARTED AN OPEN
DISCUSSION ABOUT GENERAATIVE AI
AND HOW THAT MIGHT BE BROUGHT TO
BEAR ON ACCESS AND INTEGRATION
AND I HAD PREPARED A SHORT
DISCUSSION AND JUST KIND OF
THROUGH IT OUT THERE AND WE
NEVER REALLY GOT TO PICK UP ON
THAT AND MAYBE NEXT TIME WE WILL
HAVE TO PICK UP WHERE WE LEFT
OFF AS OFTEN HAPPENS WITH THIS
GROUP BUT I WAS TALKING ABOUT
THIS IDEA OF HALLUCINATION
CONTABUALATION PROBLEM WHERE
THESE AI GENERAL MODELS WILL
GENERATE THINGS THAT THEY'RE NOT
TRUE BUT YOU CAN'T TELL WHETHER
IT'S TRUE OR NOT AND IT TURNS
OUT THEY'RE COMING UP WITH WAYS
TO LET YOU KNOW IF IT'S STUFF IS
MADE UP BUT IT DOESN'T HAVE A
WAY TO IMPLY IT TO ITSELF,
HOWEVER, WHEN YOU USE THESE IN
CONJUNCTION OF DATA SETS, FOR
EXAMPLE, THE LARGE BODY OF
MEDICAL TEXT AND THEN YOU USE
GUIDED PROMPTS, DON'T BY PEOPLE
WHO ARE FAMILIAR WITH HOW TO
STEER THE TECHNOLOGY THROUGH
IT'S DATA TO PRODUCE USEFUL
CONNECTIONS AMONG THE DATA THAT
IT HAS, YOU CAN GET VERY
VALUABLE, VALUABLE THINGS AND
THEN THAT'S KIND OF WHERE WE RAN
OUT OF TIME.
I'M SURE I LEFT OUT SOME
IMPORTANT POINTS FROM SOME OF
THE FOLKS AS I WAS TRYING TO
MAKE MY OWN POINTS AND SCRIPLE
NOTES AT THE SAME TIME.
ANYBODY ELSE WANT TO JUMP IN
THERE, CHELLE, DID I GET THE
GIST OF IT?
>>YES, YOU HIT THE HIGH POINTS.
>>EXCELLENT.
ANY QUESTIONS FOR JIM OR THE
WORK GROUP?
EXCELLENT.
ALL RIGHT.
>>HEIDI, I WOULD LIKE TO--WE'VE
HAD MANY, MANY CONVERSATIONS
HERE ABOUT THE GLOBAL BIODATA
CONSORTIUM AND HAVE OPTED NOT TO
PARTICIPATE IN IT AND I
WONDWONDERRED IF YOU WANT TO
TELL US MORE ABOUT YOUR THINKING
ON IT, IF YOU THINK WE NEED TO
RETHINK SOME OF THOSE MATTERS?
>>SO, YES, I DEFINITELY THINK
THAT ENGAGEMENT WITH THE GLOBAL
GCBR IS A GOOD IDEA IN THE SENSE
THAT YOU KNOW WE'RE A GLOBAL
COMMUNITY IN SCIENCE AND ALL OF
THE RESOURCES THAT WE GENERATE
WHETHER IT'S THE NLM GENERATES,
NCBI AS PART OF THE NLM OR IT'S
MANY SCIENTISTS IN THE COMMUNITY
GENERATING THESE RESOURCES,
THEY'RE USEFUL TO EVERYONE AND
SO, YOU KNOW IN MY VIEW, AND THE
VIEW OF THE GBCR, IT'S IMPORTANT
THAT THE GLOBAL COMMUNITY
CONTRIBUTE TO THE DEVELOPMENT
AND SUSTENANCE OF THOSE
RESOURCES AND SO THE WHOLE POINT
OF PARTICIPATING IN THOSE IS TO
MOVE TOWARDS A WORLD WHERE
THERE'S GROABAL CONTRIBUTION TO
SUSTAINING THESE RESOURCES AND
BUILDING THAT.
>>SO WE CERTAINLY AGREE WITH
THAT.
AND A LOT OF OUR EFFORTS UNDER
JERRY AND STEVE'S WORK IN THE
LAST 6 MONTHS HAVE FOCUSED ON
HOW WE REALLY ADVANCE IN A MORE
PRINCIPLED WAY, THE
INTERNATIONAL ENGAGEMENT,
INTERNATIONAL DATA SHARING, THE
REASON, I WANT TO EXPLAIN IF
THIS COMES UP, I WANT YOU TO
UNDERSTAND, WHERE OUR DECISION
BASICALLY CAME DOWN IS THAT
INFORMATION REQUESTED BY
THE--FOR MEMBERSHIP IS
INFORMATION WE DO NOT SHARE
PUBLICLY AND IT IS NOT POSSIBLE
FOR AN OUTSIDE GROUP TO ADVISE
THE NLM ABOUT ITS RESOURCES EVEN
TO SAY YES IT'S A GOOD RESOURCE
OR NOT A GOOD RESOURCE THAT
WOULD HAVE TO COME THROUGH
AFACA, SO WE CAN HAVE A
DISCUSSION IN THE FUTURE ABOUT
HOW TO BEGIN TO APPROACH THIS
BUT THIS SAY CONVERSATION STEVE
AND I AND JERRY AND ERIC HAVE
BEEN HAVING FOR OVER A YEAR AND
WE REALLY WELCOME YOUR IDEAS
ABOUT HOW TO GO FORWARD WITH THE
PRINCIPLES OF GLOBAL SHARING AND
LOOKING AT SUSTAINABILITY.
BUT BE MINDFUL OF THE FACT THAL
PARTICULAR ACTION IS NOT OPEN TO
US AS EITHER THE NLM OR THE NIH.
>>SO I MIGHT HAVE
MISUNDERSTOOD, I THOUGHT I HEARD
THAT NCBI WAS ABLE TO ENGAGE
WITH THE GBCR, BUT THAT'S NOT
THE CASE?
>>STEVE CAN CLARIFY, THIS IS A
POINT OF ENGAGEMENT BUT IT IS
NOT AS A STANDARD MEMBERSHIP
DISCLOSING OUR PERFORMANCE
MEASURES, ET CETERA.
STEVE, DO YOU WANT TO ADDRESS
THAT?
>>WELL, WE WERE EXPLORING
WHETHER THERE WAS AN OPTION OR
POSSIBILITY FOR US TO BE IN A
STATUS TO BE CONTRIBUTING IN THE
ROOM AND APPARENTLY NOT SINCE
MAYBE OUR LAST MEETING, I'VE
BEEN TALKING TO GUY COCHRAN
ABOUT THIS AND HE THOUGHT PART
OF THE FRAMEWORK, THE ONLY THING
THAT COULD HAPPEN IS THAT NLM
COULD JOIN AS A SUPPORTER, YOU
KNOW KIND OF LIKE NHGRI DID, BUT
THAT'S VERY IMPORTANT FROM FROM
THE RESOURCES THEMSELVES BEING
REGISTERED, RIGHT AS WHAT PATTY
WAS SAYING AND THAT'S WHERE
WE'RE TRYING TO DISAMBIGUATE
WHERE CAN WE PARTICIPATE IN THE
PLANNING IN THE COORDINATION
WITHOUT BEING COUPLED, I THINK
INTO THE OVERSIGHT AND ADVICE
PART.
>>YEAH, I MEAN I DO THINK, YOU
KNOW THERE ARE DEFINITELY DOES
SEEM LIKE THERE'S FUNDING, YOU
KNOW SUPPORTERS ARE PART OF AN
ECOSYSTEM AND SO YOU CAN VIEW
NLM AND NCBI AS IN SOME WAYS
SUPPORTING, YOU KNOW FUNDING
DIFFERENT RESOURCES AND
HOPEFULLY THEREFORE WOULD HAVE A
SEAT AT THE TABLE BUT THERE IS
UTILITY IN THINKING ABOUT COMMON
NEEDS ACROSS ALL THESE RESOURCES
WHICH, YOU KNOW DOESN'T MEAN YOU
HAVE TO BE, YOU KNOW, APPLY AND
BECOME 1 BUT YOUR PERSPECTIVES
ON HOW WE THINK ABOUT
COMMONALITIES ACROSS RESOURCES
WOULD OBVIOUSLY BE USEFUL BOTH
IN TERMS OF YOUR CONTRIBUTIONS
TO THAT AS WELL AS LEARNING FROM
IT.
YOU KNOW, BY DIRECTIONAL.
SO, YOU KNOW--
>>HEIDI LET ME CLARIFY 1 THING.
NLM IS NOT A FUNDER OF
RESOURCES, WE MANAGE AND CREATE
RESOURCES INTERNALLY, BUT WE DO
NOT FUND RESOURCES IN THE
COMMUNITY LIKE NHGRI, BUT INTRA
MIEWRALLY YOU FUND CLENVAR.
>>WELL THAT'S A SPECIAL
RELATIONSHIP, WE CAN GO INTO
THAT IN SOME DEPTH, IT'S
SOMETHING MORE SPECIFIC TO YOUR
OWN PORTFOLIO, BUT OUR OPERATION
DOES NOT FUND RESOURCES IN THE
COMMUNITY.
WE SUPPORT SPECIFIC ACTIVITIES,
WE DON'T HAVE ANY GRANTS
MECHANISM FOR IT, WE DON'T HAVE
ANY--EXCUSE ME, IT'S NOT
SUPPORTED THROUGH AN EXTRAMURAL
PROGRAM.
>>I KNOW IT'S NOT EXTRAMURAL.
ALL RIGHT, WELL I DON'T KNOW IF
I'VE PROVIDED ANY USEFUL
COMMENTS.
>>I THINK THE CONVERSATION WILL
CONTINUE.
>>THAT'S WHAT I WAS GOING TO
SAY, THE CONVERSATION CONTINUES,
I THINK IT IS A MATTER OF TRYING
TO THREAD THE NEEDLE, RIGHT SO
WE CAN BENEFIT FROM THAT
ENGAGEMENT WITH OTHERS IN THE
INTERNATIONAL COMMUNITY WHO DO
HAVE A SHARED MISSION, IF YOU
WILL, MAKING GENOMIC DATA AND SO
FORTH MORE ACCESSIBLE AND
INTEROPERABLE AND ALL THOSE
THINGS WHILE RESPECTING THE
FACT, YOUR UNIQUE, IN THAT
ENGAGEMENT AND BEING A FEDERAL
AGENCY, THAT MANAGES INTERNAL
RESOURCES AND WE HAVEN'T YET
FOUND THE RIGHT APPROACH BUT
THERE IS GOOD CONVERSATION GOING
ON, I THINK SOME WILLINGNESS ON
BOTH SIDES TO SEE IF THERE'S
SOME WAY THAT WE CAN I'LL SAY
FORMALIZE IT BUT JUST FIND THE
RIGHT PATH TO A GOOD
[INDISCERNIBLE] WITH THOSE KIND
OF CONDITIONS AROUND IT AND
CONCERNS THAT PATTY ARTICULATED.
>>SO WE WILL COME BACK TO THIS.
THOSE IF YOU THINK IT'S DONE,
IT'S NOT DONE, WE WILL KEEP THE
CONVERSATION GOING.
>>MAYBE WE CAN COME BACK IN
SEPTEMBER OR SOMETHING AND SEE
WHERE THINGS GO.
>>I THINK SO, I APPRECIATE THAT
STEVE HAS BEEN OUR PRIMARY
ADVISOR IN THIS AREA AND HE'S
WORKING HARD TO HELP US
UNDERSTAND THE IMPORTANCE OF
GLOBAL CONNECTION WHICH HAS
NEVER BEEN MORE IMPORTANT FOR
OUR RESOURCES THAN IT IS RIGHT
NOW AND I'VE BEEN TRYING TO HELP
HIM UNDERSTAND THE CONSTRAINTS
ON WHAT WE CAN AND CAN'T DO IN
PUBLIC.
>>I KNOW ANDY HAD HIS HAND UP
BEFORE, AND DO YOU STILL HAVE A
QUESTION OR COMMENT?
>>NO, MOMENT'S PAST.
WE COVERED IT.
>>GREAT.
I THINK WE WILL MOVE ON TO THE
PUBLIC SERVICES WORK GROUP?
>>YES I'M GOING TO BE
PRESENTING THANK YOU.
COULD WE HAVE THE SLIDES UP?
>>I DON'T SEE THEM.
>>I DON'T SEE THEM YET.
>>WELL, I CAN START TALKING
ABOUT THEM HOPEFULLY THEY WILL
COME UP SOON.
>>IS SOMEONE WORKING ON GETTING
THE SLIDES UP?
>>DO THE MEDIA PEOPLE HAVE
THEM, HEIDI?
>>JAY OR DEREK?
>>IF NOT I HAVE THEM IF YOU CAN
SHARE.
>>I WILL GO AHEAD AND SHARE.
>>OKAY, THANK YOU.
>>HANG ON 1-SECOND.
>>THERE WE GO.
WELL, THANK YOU SO MUCH
EVERYBODY.
I WANTED TO TELL YOU A LITTLE
ABOUT THE ABOUT THE WORKING
GROUP AND SOME OF THE THINGS
THAT WE'VE BEEN FINE TUNING.
SLIDE.
SO WHAT YOU'RE GOING TO SEE IN
THE NEXT SLIDE IS THE NLM BOARD
OF REGENTS, THERE WE GO, AND I
JUST WANT TO ACKNOWLEDGE
EVERYONE THAT HAS REALLY BEEN A
PART OF THIS CLINICAL TRIALS
GOVERNMENT--NEXT SLIDE, OUR
WORKING GROUP EFFORTS HAVE BEEN
QUITE INTENSE OVER ALMOST 3
YEAR.
WE HELD 16 WORKING GROUP
MEETINGS SO FAR AND WE'RE GOING
TO HAVE A FINAL MEETING IN
AUGUST AS WE ARE BEGINNING TO
SUN SET THIS GROUP WITH OVER 3
YEARS OF SERVICE.
WE ORIGINALLY ONLY SIGNED UP FOR
1 YEAR BUT THE PANDEMIC HIT AND
WE KEPT GOING, SO OUR FINAL TIME
WILL BE IN AUGUST.
SO I JUST--JUST SO THAT CAN YOU
SEE THE AMOUNT EMPLOY WORK
THAT'S BEEN DONE.
THE NEXT SLIDE, SHOWS AN
OVERVIEW OF THE CLINICAL TRIALS
MODERNIZATION OVER THE YEARS
WITH IN THE FIRST YEAR THE
INITIAL ENGAGEMENT ACTIVITIES
AND THE DEVELOPMENT,
IMPLEMENTATION, AND THEN WE'VE
BEEN EMBARKED IN SOME OF THE
RELEASES AS WE BEGIN TO SO THE
FINISH LINE AND MANY MEMBERS
WILL CONTINUE TO BE AVAILABLE AT
CLINICAL TRIALS.GOV, WE JUST
WON'T MEET IN A MORE FORMAL
CAPACITY AS WE HAVE AND WE'RE
ABOUT TO PUT TOGETHER A THIRD
REPORT WHICH SUMMARIZES THE WORK
FROM THIS YEAR WHICH WILL BE
RELEASED SOON AND YOU WILL HAVE
ACCESS TO THAT.
NEXT.
THE WORKING GROUP MEMBERS HAVE
PARTICIPATE INDEED PUBLIC
MEETING ON APRIL 25th, WHICH
WAS JUST AN AMAZING MEETING AND
WHERE NLM PROVIDED AN UPDATE ON
THE MODERNIZATION EFFORT
INCLUDING PRESENTATIONS THAT
WERE HELD BY THE STAFF WHICH
HIGHLIGHTED SOME OF THE FEATURES
THAT WERE AVAILABLE NOW, AND ALL
OF THESE FEATURES AND CHANGES,
AND WEB BASE ON USER INPUT WHICH
IS REALLY FANTASTIC, SO WE HAD
ALSO SOME UNIQUE AND SPECIAL
PRESENTATIONS FROMMEN JENNY LUCA
WHICH SHARE THE NEEDS OF THE
PATIENT WHO IS VISIT THE
CHILDREN'S INN, AND IT WAS AN
INSPIRATIONAL PRESENTATION AND
THE DOCTOR SPOKE FROM THE
RCHTERS PERSPECTIVES.
NEXT.
SO THE PUBLIC MEETING HAD A
LARGE NUMBER OF ATTENDEES, AS
CAN YOU SEE, ALMOST 600
ATTENDEES WERE THERE AND WE HAD
REALLY GOOD ENGAGEMENT IN THE
BREAK OUT ROOMS AS WELL AND THE
ATTENDANCE SAID THEY PREFERRED
THE METHODS WE HAVE BEEN MEETING
WITH WHICH WAS THE WEBINARS WAS
THE TOP CHOICE OF EVERYONE SO
THAT WILL CONTINUE TO BE 1 WAY
THAT WE WILL CONTINUE
COMMUNICATING WITH THE PUBLIC AS
WELL AS SOME OF THE TRAINING
SESSIONS AS ANY CHANGES BECOME
AVAILABLE.
NEXT?
>>SO THE CLINICAL TRIALS.GOV
BETA WEBSITE IS GOING TO BE THE
PRIMARY WEBSITE STARTING IN
JUNE.
BUT THE REMAINING FEATURES WILL
BE ADDED THROUGHOUT THE YEAR AND
THE CLASSICAL WEBSITE WILL STILL
BE AVAILABLE FOR SOMETIME AS
PEOPLE TRANSITION FROM 1 INTO
THE OTHER.
NEXT.
JUST LAST WEEK THE PRS HAD A
RELEASE WHERE THE USERS CAN
REGISTER THEIR RECORD IN THE NEW
REGISTRATION MODULE.
THE WORK IN THE PRS DETAILSA
WILL CONTINUE WELL INTO 2024 AS
WE REFINE AND FINALIZE THINGS
BUT IT'S BEEN REALLY WELL
RECEIVED AND JUST TODAY WE SAW
NEW FEATURES AND HOW WE WILL BE
MODIFYING THOSE.
NEXT.
SO THE BOARD OF REGENTS WORKING
GROUP MEMBERS WITH THEIR INPUT
HAS REALLY HELPED TO SHAPE THE
ENGAGEMENT EFFORTS AND THE
COMMUNICATION THROUGHOUT THE
CLINICAL TRIALS.GOV
MODERNIZATION, AND A VARIETY OF
METHODS HAVE BEEN USED TO REACH
PEOPLE THROUGH ALL THESE
DIFFERENT YEARS, SO I WANT TO
THANK THIS BOARD OF REGENTS IN
PARTICULAR AND THE ESTABLISHMENT
OF THE WORKING GROUP.
WE WERE ABLE TO SEE THESE BETA
PRODUCTS IMROA FROM THEIR
INFANCY TO SIMPLY STANDING
ALONE.
SO THIS WILL BE THE LAST REPORT
OUT FROM THIS TEAM AND HOWEVER,
THE NLM TEAM WILL CONTINUE TO
BUILD AND ENGAGE THE COMMUNITY
AND WE WILL BE ONLY A CLICK AWAY
IF YOU NEED ANYTHING FROM THE
WORKING GROUP.
AND YOU CAN SEE HERE THAT
AUDIENCE HAS AT TIMES REACHED
800 AND THIOF THE THOUSAND
PEOPLE THROUGH SOCIAL MEDIA AND
RECEIVED OVER 1800 COMMENTS AND
MOST OF THOSE COMMENT VS BEEN
ADDRESSED AND THAT INPUT HAS
ALSO GONE INTO THE WEBSITE.
NEXT?
SO, WITH THAT, AS WAS SAID
EARLIER THIS IS ALSO MY LAST
MEETING SO I JUST WANT TO THANK
EVERYONE FOR ALL THE WORK, I
WANT TO THANK THE STAFF IN
PARTICULAR, I WANT TO THANK
PATTY AND HEIDI WHO HAVE BEEN
JUST TREMENDOUS?
GUIDING ALL OF US AND JUST WISH
YOU ALL LUCK IN THE NEW
ENDEAVORS AND I WILL BE WATCHING
SO TAKE GOOD CARE OF YOURSELF,
TOO.
THANK YOU.
>>THANKS LOURDES, AND THAT'S
AMAZING PROGRESS.
>>THANKS LOURDES.
>>GREAT TO BE HEADING OUT SUM
ULTIMATELY TAINIOUS WITH A GREAT
ACCOMPLISHMENT.
SO OPEN IT UP FOR ANY QUESTIONS
OR DISCUSSION, KRISTI?
>>YES, SO FIRST OF ALL
CONGRATULATIONS.
THIS IS JUST A TREMENDOUS EFFORT
AND THIS IS A TERRIFIC
MODERNIZATION EFFORT AND KUDOS
TO YOU AND EVERYONE WORKINGA THE
NLM.
I HAVE 1 QUICK QUESTION FOR YOU
WHICH IS TO UNDERSTAND SO THIS
IS AN EFFORT WITH FORWARD
MOMENTUM AND A LOT OF ENTHUSIASM
ABOUT IT SO I'M WONDER FIGURE
YOU HEARD THROUGH THE DIFFERENT
PUBLIC DISCUSSIONS OR MEETING
THAT OTHER IDEAS, EITHER THE
COMMUNITY, USERS OR PEOPLE WHO
LEVERAGE CLINICAL TRIALS .GOV,
IN OTHER WAYS WOULD LIKE TO SEE
THIS RESOURCE GROW, HAVE YOU
RECEIVED ANY REQUESTS FOR
FEATURES OR ANYTHING LIKE THAT?
>>THROUGH THE YEARS WE HAVE HAD
LOTS OF FEEDBACK FROM THE
PUBLIC, FROM DIFFERENT TYPES OF
PUBLICS, BECAUSE WE HAVE
MULTIPLE AWRDIENCES AND JUST
RECENTLY AT THE LAST MEETING, I
THINK THAT A FEW IDEAS CAME UP
FROM THAT MEETING THAT ARE
ALREADY BEING IMPLEMENTED SO
TODAY IN THIS SESSION, WE SAW
SOME OF THAT, I WILL TURN IT TO
ANNA, IN CASE SHE WANTS TO GIVE
YOU YOU VERY SPECIFIC DETAILS OF
HOW ANY ON THE STAFF IS MAKING
THOSE CHANGES PER SE, BECAUSE
THE GOOD THING THAT THE WORKING
GROUP HAS WORKED IS THAT WE
REALLY LISTEN AND THEN THOSE
THINGS THAT ARE IMPLEMENTED AND
WE ACTUALLY SEE THE CHANGES,
WHETHER IT'S IN THE WORDING OR
IN HOW PEOPLE ACCESS IT, SO
THERE'S ANNA, I WILL LET HER
RESPOND.
>>YOU DID A GREAT JOB.
AND ABSOLUTELY RECEIVED A LOT OF
FEEDBACK AND THERE ARE FEEDBACK
THAT DO REQUEST NEW FEATURES AND
AS SHE SAID AT THE LAST MEETING,
IT'S A GREAT RESOURCE AND
PLATFORM THAT CONNECTS WITH SO
MANY PLACES THAT THERE IS
REQUESTS TO ADD MORE, CAN YOU
HOUSE THESE TYPES OF DOCUMENTS,
CAN YOU ADD IMPAGES, SO THERE'S
A LOT THAT WE GET AND OF COURSE
WE CAN ONLY GET TO SO MANY IN A
CERTAIN AMOUNT OF TIME.
BUT WE DO GET REQUESTS FOR NEW
FEATURES, A LOT ALSO IS CAN YOU
JUST UPLOAD DOCUMENTS.
WHY SHOULD I HAVE TO USE YOUR
FORMAT, I LOVE TO BE ABLE TO
JUST SCAN IT AND DO IT SO
THERE'S A REQUEST FOR TECHNOLOGY
MAY NOT BE THERE YET AS WELL BUT
WE DEFINITELY LOOK AT THEM ON
CASE BY CASE AND WHATEVER
SEASONAL WE PUT ON THE LIST,
GREAT IDEA, EVEN MODERNIZATION'S
OVER, WE WILL CONTINUALLY BE
IMPROVING AND MAKING THESE IDEAS
AND FEEDBACK.
>>THANK YOU.
ANY OTHER QUESTIONS OR COMMENTS?
OKAY, WE WILL MOVE ON TO THE
COLLECTION GROUP?
>>HELLO, EVERYONE.
I WILL BE REPORTING FOR THE
COLLECTIONS GROUP.
I WILL SHARE MY SCREEN REALLY
QUICKLY.
AND, OKAY, SO, I WILL GIVE A
BRIEF KIND OF INTRODUCTION TO
OUR DISCUSSION AND THEN I WILL
HIT THE HIGHLIGHTS OF OUR
DISCUSSION.
WE WERE TALKING ABOUT
INVESTIGATING BIAS IN PUB MED
SEARCH RESULTS AND THE
SPECIFICALLY THE ISSUE IS ABOUT
THE SORTING OF THE PUB MED BEST
MATCH SEARCH RESULTS BEING
REPORTED IN PUB MED.
PUB MED BEST MATCH USING A HUB
RHYTHM THAT RETURNS SEARCH
RESULTS WITH HIGHLY SELECTED
ARTICLES AT THE TOP OF THE
SEARCH RESULTS LIST AND THERE
ARE A NUMBER OF REQUESTIES THAT
CAME IN ABOUT ARE PUB MED SEARCH
RESULTS BIASED, HOW DO YOU KNOW
THEY'RE BIASED OR KNOW THAT
THEY'RE NOT BIASED AND WHAT ARE
YOU GOING TO DO ABOUT IT?
WE HAD AN EARLY ATTEMPT AT A
SOLUTION TO ANSWER THIS
QUESTION.
WE HELD A CODE-A-THON LAST YEAR
TO ENGAGE NATURAL LANGUAGE AND
PROCESSING LIBRARY COMMUNITIES
TO DEVELOP SOLUTIONS TO THIS
QUESTION AND THE MAIN THING WE
LEARNED IS THAT WE NEEDED TO
LEARN A LOT MORE ABOUT
INVESTIGATING BIAS.
WE'VE SINCE STARTED
COLLABORATING WITH NIST TO
DISCUSS INVESTIGATING BIAS THIS
YEAR.
NIST HAS RECENTLY MADE THEIR
ARTIFICIAL INTELLIGENCE RISK
MANAGEMENT FRAMEWORK PUBLIC AND
WE ARE WORKING WITH THEM.
THEY'RE GIVING US DWRDS HOW
ABOUT HOW WORK THROUGH THE
PROCESS OF DOING THIS SORT OF
INVESTIGATION.
MAINLY WHAT WE'VE LEARNED FROM
THEM ARE A BUNCH OF QUESTIONS
THAT WE NEED TO ASK ABOUT
OURSELVES OR ASK OURSELVES.
HOW DO WE DEFINE EQUITY.
WHAT ARE WE TRYING TO DO REALLY
IN SEARCH RESULTS, WHAT ORDERING
ARE WE REALLY TRYING TO GIVE
OUT?
AND HOW DO WE DEFINE WHAT WE
MEAN BY EQUITY FOR DIFFERENT
USER WHO IS WANT DIFFERENT
THINGS FROM SEARCH.
SO WE'RE DISCUSSING THIS IN OUR
GROUP AND DIANE SUGGESTED WE
HAVE THIS COLLECTIONS WORKING
GROUP THAT ALWAYS HAS A LOT OF
GREAT IDEAS.
WHY DON'T WE TAKE THESE
QUESTIONS TO THEM?
AND WE STARTED OFF WITH SOME
VERY GENERAL DISCUSSION
QUESTIONS, AND NOW I'M GOING TO
HIT THE HIGHLIGHTS OF OUR
DISCUSSION AND APOLOGIES TO
ANYONE WHO I MISATTRIBUTE OR
MISQUOTE BUT I WAS TYPING FAST
AND FURIOUS BECAUSE DIANE WAS
RIGHT, THE GROUP DID HAVE A LOT
OF IDEAS.
SO ESSENTIALLY FROM OUR
DISCUSSION, IT'S OBVIOUS THERE
WILL BE BIAS ANYTIME YOU MAKE
DECISIONS ON HOW TO ORDER
RESULTS.
THE BEST MATCH IS ESSENTIALLY A
FEEDBACK CYCLE WHERE THE RICH
GET RICHER AND SOME LESS POPULAR
RESULTS MAY OR MAY NOT EVER BE
SEEN.
IT'S INTERESTING THE BEST MATCH
VERSUS--BEST MATCH ORDERING
VERSUS PUB DATE ORDERING IN
SEARCH RESULTS WILL RETURN THE
SAME SET OF ARTICLES JUST
ORDERED IN A DEFINITE WAY.
SO THE GROUP DECIDED THAT OTHER
BIAS RELATED WORK NEEDS TO BE
DONE THAT MIGHT HAVE AN EFFECT
ON SEARCH RESULTS.
ONE THING IS LOOKING AT BIAS IN
THE COLLECTION, BIAS IN THE
ARTICLES THAT ARE IN THE
COLLECTION AND ALSO BIAS IS
INTRODUCED BY INDEXING.
NEXT LANGUAGE PROCESSING IS
BEING USED TO INDEX MED LINE
RIGHT NOW.
SO WE NEED TO LOOK AT THAT.
THERE WAS AN INTERESTING
SUGGESTION.
WE HAVE THE ABILITY, WE HAVE
INSTANCES OF DUPLICATE PUB
LINKING ICFICATIONS AND PAPERS
IN PUB MED, THESE ARE PUBLISHED
ACROSS JOURNALS WITH THE EXACTLY
THE SAME CONTENT AND IF THESE
ARE RETURN SORTED DIFFERENTLY
THIS IS GOING TO BE VERY
INTERESTING.
REALLY LIKE A TWIN STUDY.
SO THIS WOULD BE AN INTERESTING
THING TO DIG INTO.
WE REALIZE WE CAN'T
CERTAINLY--CERTAINLY EMILYINATE
BIAS BUT WE NEED TO UNDERSTAND
IT.
WE WOULD KNOW IF WE ARE
PROMOTING OR DEMOTING THINGS
BASED ON POPULARITY AND IF WE
ARE DOING THAT, WHICH IS WHAT
THE BEST MATCH DOES, WE NEED TO
BE EXPLICIT TO USERS ABOUT THE
SORTING METHODS SO THAT THEY
UNDERSTAND HOW RESEARCH RESULTS
ARE BEING MANIPULATED.
DIFFERENT PEOPLE ARE USING THESE
TOOLS IN DIFFERENT WAYS, BIAS
CAN BE SOMETHING AS SIMPLE
ASMENT STRUCTURE OF THE TITLE,
DECLARE THAT TITLES ARE MORE
INTERESTING OR RESULTING MORE
THAN OTHERRINGS.
THIS WOULD BE INTERESTING TO
INVESTIGATE.
HOW WE THINK ABOUT THE CONTENT
OF A PAPER.
THERE'S A DIFFERENCE BETWEEN
PAPERS THAT ARE HIGHLY CITED AND
THOSE THAT ACTUALLY TRANSFER
KNOWLEDGE, SO ARE WE ABLE TO
TRACE THE BREAD CRUMB TRAIL AND
PROMOTE PAPERS THAT SPUR NEW
RESEARCH?
THIS IS FASCINATING.
IMAGINE WE HAVE A DATA SET THAT
IS CONNECTED AND CAN HAVE AN
ALGORITHM AND CONNECTS THE MOST
PAPERS TO THE TOP OF THE SEARCH
RESULTS.
IF WE DO INTRODUCE SYSTEMAT
BEING BIAS, WE NEED TO BE
EXPLICIT ABOUT WHAT IT IS AND
THERE'S A LARGER MANAGEMENT
ISSUE FOR US IS HOW DO WE BUILD
THIS SORT OF CHECKING AND
TESTING AND MANAGING OF BIAS IN
THE FRAMEWORK AS WE DEVELOP NEW
CODE AND THEN 1 LAST SUGGESTION,
WE TALKED A LOT ABOUT DEFINING
QUANTITATIVE PROPERTIES WE CAN
MEASURE, MARK AND MEASURE TO TRY
TO MEASURE OUR BIAS.
THERE WAS A SUGGESTION TO
INVESTIGATE SEARCH THE
QUALITATIVE EXPERIENCE, SO THINK
ABOUT THE GENERAL PUBLIC USER
JUST COMES INTO GOOGLE AND BANGS
IN A SEARCH AND GETS OR DOESN'T
GET WHAT HE OR SHE IS LOOKING
FOR AND THAT WOULD BE AN
INTERESTING THING TO DISCOVER
ALSO.
SO THAT'S A PRETTY HARD BOILING
DOWN OF A WONDERFUL DISCUSSION.
STEVE OR DIANE, IS THERE
ANYTHING THAT I MISSED THERE?
>>NOTHING FROM ME JEFF.
I THINK THAT WAS A GREAT
SUMMARY.
IT WAS A GREAT CONVERSATION.
I LOOK FORWARD TO WORKING WITH
THE GROUP AGAIN ON THIS.
I THINK THERE'S A LOT OF IDEAS
WE CAN TAKE GOING FORWARD.
>>YEAH, AND DITTO FOR ME.
THANK YOU, STEVE.
WE'VE ALREADY PLANTED THE SEAT
OF MAYBE CATCHING UP IN
SEPTEMBER TO TALK ABOUT WHERE WE
ARE.
>>DIANE YOU'RE A LITTLE LOW.
>>OH, OKAY.
HOLD ON.
ALL RIGHT, BETTER?
>>YES.
>>EXCELLENT.
WELL I'M HAVING TECHNOLOGICAL
DIFFICULTIES, HOPEFULLY AT NOT
1:45 BUT WE WILL SEE HOW THIS
TURNS OUT BUT WE WILL GO AND
HEAD AND CONTINUE THE DISCUSSION
AND FUTURE COLLECTIONS AND
WORKING GROUPS ON WHERE WE ARE
AND PARTS OF THE PROCESS GOING
FORWARD TO INTORPERATE MORE
FEEDBACK.
SO THANK YOU TO EVERYONE, IT WAS
REALLY GREAT.
GREAT DISCUSSION.
>>GREAT, THANK YOU TEAM.
ANY QUESTIONS FOR THE
COLLECTIONS OR GROUPS?
>>ALL RIGHT, WELL, THEN WE WILL
MOVE ON.
>>HEIDI I HAD CONQUICK COMMENT
TO MAKE AND I WANT TO TAKE JEFF
BACK TO A CONVERSATION MAYBE 6
YEARS AGO WHEN WE FIRST STARTED
TALKING ABOUT THE HOW DO WE
FIGURE OUT IF THIS IS WORKING
RIGHT?
AND I WANT TO SAY, YOU GUYS HAVE
DONE AN AMAZING JOB AND I REALLY
APPRECIATE THE EFFORTS THAT HAVE
GONE INTO IT, I'VE BEEN
PARTICULARLY BECAUSE WE HAVE 1
OF THEIR SHOWCASE OPERATIONS
TAKING THIS RISK SPACE, AI, SO
WE WILL MAKE SURE YOU HAVE THE
BOARD MEMBERS HA MAKE SURE YOU
HAVE A LINK TO THIS, IN THE
MINUTES OF THE MEETDING SO THIS
IS REALLY SPECTACULAR, MAYBE
BEEN RELEASED THE LAST 60 DAYS
AND IT HAS A NICE FRAMEWORK SO
HOSPITALS CAN USE THIS
CONSIDERING AI, RESEARCHERS CAN
USE IT AND IT BRINGS YOU THROUGH
1 OF THE FACTORS YOU SHOULD
THINK OF BECAUSE AS JEFF SAID,
THEY WILL HAVE ANSWERS YOU WANT
TO GET TO BUT THANK YOU JEFF FOR
YOUR PERFORMANCE WITH THIS.
>>OKAY, YOU WILL GO WITH ANN.
>>I WILL SHARE MY SCREEN IF
THAT'S OKAY.
>>OKAY, YOU SEE MY SLIDES?
>>YEAH, SO THIS WAS A WORKING
GROUP ON STRAY JECTORY STIGIC
PLANNING AND REALLY IT WAS 2
NICE PRESENTATIONS 1 ON THEM
FROM MED LINE PLUS FROM MARGARET
McGEE, I HOPE I AM PRONOUNCING
THAT RIGHT.
AND TALKING ABOUT DEVELOPING
SORT OF A TOOL TO HAVE
PRINCIPLES TO HELP PEOPLE
EVALUATE HEALTH INFORMATION AND
ITS ACCURACY AND REALLY SETTING
CRITERIA TO MAKE SURE THAT THE
INFORMATION IS FREE FROM
ADVERTISEMENT.
IT'S MINDFUL OF PRIVACY AND SO
FORTH.
AND IT REALLY GUIDES PEOPLE TO
INFORMATION THAT CAN BE TRUSTED.
THERE WAS ALSO RECOMMENDATIONS,
LIKE I SAID THAT WHEN EVALUATING
THESE SOURCES OF HEALTH
INFORMATION, THE REVIEW, THE
PROVIDER, HOW THE GROUP WAS
FUNDED, WAYS TO DETERMINE THE
QUALITY, WAS IT BASED ON
SCIENCE?
ARE THERE EXPERTS USED, CITING
LITERATURE AND WHETHER THE CITE
CONTAINS ANY OF YOUR INFORMATION
SO AGAIN, THE PRIVACY ISSUE OF
THIS AND THEY WERE ASKED TO
PARTICIPATE IN THE NATIONAL
ACADEMY OF MEDICINE PROJECT TO
HELP IDENTIFY THOSE PRINCIPLES
AND USING SORT OF USING THE
PANDEMIC AND THE INFORMATION
THAT WAS AVAILABLE ON COVID-19,
AS SORT OF A GUIDE OR AN
EXAMPLE, A USE CASE, THEY WERE
INVOLVED IN THE INDEPENDENT
EXPERT ADVISORY GROUP OF
MULTIDISCIPLINARY EXPERTS, HAD A
PUBLIC WEBINAR.
SOME COMMENT PERIOD, AND OTHER
WAYS TO GATHER INFORMATION AND
SO, THEN, THEY IDENTIFIED THESE
PRINCIPLES, ON HOW TO EVALUATE
THE QUALITY OF HEALTH
INFORMATION AND THE CREDIBILITY
AND WAS ABLE TO PUBLISH THIS IN
A PERSPECTIVE, WHICH IS LISTED
HERE.
THEN WE HAD A SECOND--A SECOND
TALK ON THE NNLM WHICH DID NOT
KNOW WHAT THAT WAS UNTIL THEY
TOLD ME THAT IT WAS A NETWORK OF
NATIONAL LIBRARY OF MEDICINE AND
THIS HAS--THIS IS REALLY A TRAIN
THE TRAINER FROM WHAT I
UNDERSTAND GOALS OF MAKING SURE
THAT THE NETWORK HAS EXPERTISE
AND TRAINING.
THEY HAVE A LONG HISTORY OF
WORKING WITH THE TOPIC OF
MISINFORMATION.
THEY HELD A VIRTUAL SYMPOSIUM IN
APRIL OF 2023, THAT HAD MANY,
MANY PARTICIPANTS.
I THINK IT WAS SOMEWHERE AROUND
700 IF I REMEMBER, THAT WERE
ACTIVE PARTICIPANTS AND OTHERS
COULD GET THE RECORDINGS, AND
LOOKING AT RESEARCH BEHIND
HEALTH MISINFORMATION ISSUES,
AND PROVIDING SORT OF PRACTICAL
AND EVIDENCE BASED SKILLS TO
SUPPORT THE LIBRARIANS, HEALTH
EDUCATORS AND DIRECT CARE
PROVIDERS WHEN EVALUATING AND
HELPING OTHERS TO EVALUATE
HEALTH INFORMATION AND THEN
THERE'S ALSO A WEBINAR SERIES ON
THE SAME TOPIC.
AND THIS IS A REALLY GREAT WAY
TO GET THE INFORMATION OUT TO
THE NETWORK.
AND SO THEN THE DISCUSSION
QUESTIONS WENT INTO--I THINK
THESE WERE THE 1S THAT WERE
PROPOSED, WHILE WE CONTINUE TO
RELY ON EXPERTISE AND
EXPERIENCE, HOW CAN NLM CONTINUE
TO GROW IN NEW AREAS AND WAYS OF
ADDRESSING EVOLVING NEEDS, THIS
TURNED INTO A DISCUSSION
ABOUT--THE FACT THAT A LOT OF
THE PUBLIC AND A LOT OF THE
ACADEMIC--A LOT OF RESEARCHERS
GO TO GOOGLE, NOT TO A LIBRARY
ANYMORE AND TRYING TO COME UP
WITH WAYS OF SORT OF ADDRESSING
THAT AND HOW LIBRARIANS
ENCAPTURE THAT AND USE IT TO
THEIR ADVANTAGES.
HOW DO YOU DEVELOP THE SKILLS TO
ACCESS UNDERSTANDING NEWS
INFORMATION, HOW DO WE REACH
TRADITIONALLY MARGINALIZED AND
UPDATER REPRESENTED POPULATIONS.
SO I HAVE A FEW NOTES ON WHAT WE
TALKED ABOUT THERE AND--CAN YOU
STILL SEE MY SLIDES?
>>YEAH.
>>SO SOME OF THE KEY THEMES
THAT EMERGED WAS WHAT IS THE
ROLE OF THE LIBRARIANS AND THE
NATIONAL LIBRARY OF MEDICINE,
WHERE, LIKE I SAID MOST
INFORMATION COMES FROM SOCIAL
MEDIA AND GOOGLE TO BE FRANK
UNFORTUNATELY, AND HOW DO YOU
ADDRESS THE INFORMATION AND THE
MISINFORMATION AND I THINK THAT
THE THOUGHT WAS OR
REALISTICALLY, YOU CAN'T PUT OUT
THE INFORMATION, THE CORRECT
INFORMATION, YOU NEED TO REALLY
TRAIN PEOPLE TO BE ABLE TO LOOK
AT THE INFORMATION AND JUDGE
BASED ON SOME CRITERIA, WHAT
THEY SHOULD BE BELIEVING OR NOT
BELIEVING.
SO I THINK TRAINING, YOU KNOW
PART OF THE NNLM IS REALLY
FOCUSED ON TRAINING, FUNDING AND
OUTREACH AND I THINK THOSE ARE
GREAT GOALS CONTINUING ON WITH
THE SYMPOSIUM AND WEBINAR SERIES
WHICH SEEMS TO BE VERY, VERY
POPULAR AND SUCCESSFUL.
THERE WERE SOME DIFFERENT
LECTURES AND THINGS THAT WERE
SHARED DURING THE MEETING ON
UNDERSTANDING, MISUNDERSTANDING,
MISINFORMATION, THERE WERE SOME
NLM LECTURE ON SCIENCE
TECHNOLOGY AND SOCIETY ABOUT
MISINFORMATION AND THEN THERE
WAS DISCUSSION ABOUT THE NHIP
PROGRAM WHICH IS AN ENVIRONMENT
HEALTH INFORMATION PARTNERSHIP
AND REALLY HOW DO YOU GET
INFORMATION OUT TO ALL PEOPLES
AND HOW DO YOU LEVERAGE, YOU
KNOW AND GET OVER SOME OF THE
MISTRUST IN SOME COMMUNITIES
THAT THEY HAVE TO THE GOVERNMENT
AND TO SCIENCE IN GENERAL SO
THAT YOU, AGAIN, YOU CAN TRAIN
THE TRAINER IN OTHER VENUES,
THEN, ONLY THE LIBRARIES AND THE
LIBRARIANS, SO I THOUGHT THAT
WAS VERY INTERESTING.
THERE WAS--AND TO POINT OUT THAT
NLM IS 508 COMPLIANT AND IT HAS
BEEN FOR A LONG TIME BUT REALLY,
HOW DO YOU REACH MARGINALIZED
AND UNDERREPRESENTED GROUPS AND
YOU KNOW, DISCUSSION THAT YOU
HAVE TO FIND AREAS OF COMMUNITY
MEMBERS WHO ARE TRUSTED AND TRY
TO DISTRIBUTE AND INFORM THROUGH
THEM.
SO I THINK THAT WAS SORT OF WHAT
WAS DISCUSSED UNLESS I'VE MISSED
SOME POINTS.
I WOULD BE HAPPY FOR PEOPLE TO
COMMENT.
>>GREAT.
THANK YOU ACTIVITIES AND
PROJECTS AN.
THAT WAS AN EXCELLENT REPORT OUT
FOR YOUR FIRST TIME, FIRST DAY
ON THE BOARD AS A CONSULTANT.
ANY QUESTIONS OR COMMENTS?
>>I JUST HAVE A QUICK COMMENT,
WHILE I WISH THAT ALL OF NLM'S
RESOURCES WERE 508 COMPLIANT, WE
CAN'T QUITE CLAIM THAT YET.
WE ARE WORKING TOWARDS THAT,
CERTAINLY THE SLIDES YOU WILL
WILL SEE FROM MEETING HAVE BEEN
PUT THROUGH A 508 COMPLIANCE TO
MAKE SURE THEY'RE ACCESSIBLE FOR
ALL SETS OF ABILITIES AND WHEN
YOU GET INTO A NUMBER OF PUBLIC
FACING RESOURCES THAT WE HAVE
WHICH ARE IN EXCESS OF 1500, IT
WILL TAKE US A WHILE HOW TO BEST
DO THAT SO WE'LL NEED A LITTLE
MORE TIME BUT WE ARE COMMITTED
TO FOLLOWING THE NIH AND THE
FEDERAL GOVERNMENT'S GUIDANCE TO
ACCELERATE IT.
>>THANK YOU FOR CORRECTING ME
ON THAT.
>>ALL RIGHT, IF THERE ARE NO
FURTHER QUESTIONS OR COMMENTS, I
THINK WE WILL MOVE ON TO OUR
NEXT TOPIC.
SO THAT IS THE NLM LIBRARY
OPERATIONS VISION AND ROADMAP
FOR THE LIBRARY'S THIRD CENTURY
AND WE WILL HEAR FROM MISS
DIANNE BABSKI.
>>ALL RIGHT.
THANK YOU VERY MUCH.
EXCELLENT.
LET'S GO AHEAD TO THE NEXT
SLIDE, PLEASE IS MY SOUND OKAY
NOW?
>>YES, IT'S GREAT.
>>EXCELLENT.
FANTASTIC.
OKAY, THANK YOU.
ALL RIGHT, SO HELLO AND GOOD
AFTERNOON, EVERYONE I'M DIANNE,
BABSKI, ASSOCIATE DIRECTOR FOR
LIBRARY OPERATIONS AND I AM VERY
EXCITED TO PRESENT ABOUT LIBRARY
OPERATIONS OR L. O.s, LONG
RANGE PLAN, AND OTHER IMPORTANT
WORK ACROSS NLM UNDER THE THEME
OF BUILDING OUR VISION AND WORLD
MAP FOR THE THIRD CENTURY.
AND FOR THOSE OF YOU THAT DON'T
KNOW, OUR THIRD CENTURY BEGINS
IN 2036 WHICH IS NOT THAT FAR
OFF.
NEXT SLIDE, PLEASE.
SO FIRST I'M GOING TO START WITH
THE WHY OUR WORK AND LIBRARY
OPERATIONS MATTERS?
BUILDING ON THIS COMMON VISION,
I WILL WALK YOU THROUGH HOW THE
LONG RANGE PLAN IS BEING
IMPLEMENTED NOW.
WE'RE ALREADY 2 YEARS INTO IT
AND PROVIDE SOME STATUS UPDATES
ON OUR 5 GOALS AND LAST I'M
GOING TO CONCLUDE TODAY'S
PRESENTATION WITH SOME OF THE
THINGS THAT ARE ON THE HORIZON.
WHAT'S ON THE ORHIGHSON RELATING
TO OPEN SCIENCE, THE LATEST
GENERATIVE AI STUFF AND
DEVELOPMENTS THAT WE'RE
MONITORING AND INCORPORATING
INTO OUR WORK AS WE CONTINUE TO
EVOLVE INTO OUR FUTURE.
SO NEXT SLIDE, PLEASE, SO FOR
TODAY, I WILL START WITH THE WHY
OUR WORK MATTERS, NEXT?
SO BEFORE I GET INTO OUR PLAN I
THOUGHT IT WOULD BE PRUDENT TO
GIVE YOU A BACK GROWBD ABOUT
LIBRARY OPERATIONS AND WHAT WE
DO.
L. O. IS 1 OF THE LARGEST
DIVISIONS IN THE LIBRARY WITH
ALMOST 450 STAFF AND
CONTRACTORS.
WE SERVE A WIDE RANGE OF USERS
AND WORK TOGETHER WITH OUR
NETWORK OF THE NATIONAL LIBRARY
OF MEDICINE SO YAY FOR LEARNING
THAT TODAY AND THAT NATIONAL
NETWORK IS COMPOSED OF MORE THAN
8000 ORGANIZATIONS INCLUDING
HEALTH SCIENCES LIBRARIES,
PUBLIC LIKEERARYS AND A VARIETY
OF COMMUNITY ORGANIZATIONS ALL
WORKING TOGETHER WITH A GOAL OF
IMPROVING ACCESS TO QUALITY
HEALTH INFORMATION.
THREE YEARS AGO, WE CREATED THIS
FRAMEWORK TO HELP DESCRIBE OUR
WORK WHILE WE'RE TRYING TO HELP
NEW STUFF ONBOARD IN A VERY
LARGE ORGANIZATION WHEN WE WERE
ALL IN THAT REMOTE WORLD.
WE REFER TO THIS AS OUR 3 Cs,
WE COLLECT,EE WE CURATE AND WE
CONNECT.
SO WE COLLECT BY SELECTING
ACQUIRING AND PRESERVING 1 OF
THE WORLD'S LARGEST AND MOST
TRUSTED PHYSICAL AND DIGITAL
COLLECTIONS OF HEALTH AND
BIOMEDICAL INFORMATION AND
LITERATURE.
WE CURATE BY CATALOGING
INDEXING, PROCESSING AND
CREATING METADATA TO MAKE ALL OF
THIS BIOINFORMATION FAIR.
>>AND WE CONNECT BY LINKING OUR
DIVERSE GLOBAL AUDIENCE TO NLM
PRODUCTS AND SERVICES FOR USERS
OF ALL BACKGROUNDS TO LEARN
RESEARCH AND DISCERN QUALITY
HEALTH INFORMATION.
NEXT SLIDE, PLEASE.
SO OVER THE LAST 187 YEARINGS,
THE LIBRARY HAS EVOLVED FROM
INFORMATION PRACTICES HAVE
CHANGED AND TECHNOLOGY HAS
BECOME AN INTEGRAL PART IN THE
WAY WE WORK.
OUR 2036 LONG RANGE PLAN FOCUSES
ON LAYING OUT NEW AND FEATURED
WORK FOR L. O. AND MANY
STRATEGIC AND LONG RANGE PLANS
IT IS NOT INTENDED TO BE
ALL-INCLUSIVE.
WE'RE GOING TO CONTINUE TO
SUPPORT OUR CORE MISSION, WHILE
WE FIND SOME CAPACITY TO TAKE ON
NEW THINGS AND PIVOT.
AND NOTE, THAT YOU SEE THAT THE
DATA ON THIS IS NOVEMBER 2021,
SO WE EMBARKED ON THIS ROADMAP
DURING THE COVID PANDEMIC.
SO WE WERE ALREADY ADAPTING TO
NEW WAYS OF WORKING AND HOW TO
BETTER SERVE OUR CUSTOMERS IN A
WAY THAT THEY NOW EXPECT.
NEXT SLIDE.
SO L. O.'S CORE FUNCTIONS THE
CONTINUE TO UNDERPIN THE OVERALL
MISSION OF THE LIBRARY WHICH IS
TO COLLECT, PRESERVE AND
DISTEMINATE BIOHEALTH AND
MEDICAL INFORMATION.
AT THE SAME TIME WE'RE
CONTINUOUS LOW INSURING THAT L.
O.'S PLANS CONTINUE TO APLIEN
WITH THE NLM'S TRANSLATIONAL
RESEARCH TEEJIC PLAN GOALS HERE
TO ACCELERATE DISCOVERY, REACH
MERE PEOPLE NONAPOPTOTIC NEW
WRAIS AND BUILD OUR FUTURE
WORKFORCE.
NEXT SLIDE.
AND BEYOND THE LINING WITH OUR
STRATEGIC PLAN, WE CRAFTED OUR
PLAN'S GOALS IN SUPPORT OF WERE
THE PLANS AND INITIATIVES.
THE OPTIMIZE NIH INITIATIVES,
HHS INTELLIGENCE STRATEGIES AND
OTHER EXECUTIVE OFFICE ORDINANCE
NUMBERERS TO MAXIMIZE
OPPORTUNITIES, STREAMLINE
PROCESSES AND MAKE USE OF
AUTOMATION AS DETAILED IN THESE
DOCUMENTS.
OUR INTEND OF THE PLAN WAS TO
DETERMINE LONG-TERM GOALS AND A
DESIRED FUTURE STATE, YET AT THE
SAME TIE WE WANT TO REMAIN AGILE
TO ADAPT TO CONSTANT CHANGE,
ESPECIALLY THAT WE'VE SEEN OVER
THE PAST 3 YEARS, WE ARE
MODERNIZING OPERATIONS WITH THE
BROADER ORGANIZATIONS NIZZATION
AND AGENCY GOALS.
NEXT SLIDE, SO ABOUT 5 YEARS
AGO, WE HELD WORKSHOPS IN L. O.
TO HELP US IDENTIFY OUR CORE
VALUES THAT MOTIVATE AND GUIDE
US TO PROVIDE THE FOUNDATIONAL
PRINCIPLES IN OUR WORK.
THESE ENCLUED SERVICE, KNOWLEDGE
SHARING, QUALITY,
TRUSTWORTHINESS AND USER FOCUS,
ALL OF THESE THINGS YOU WOULD
EXPECT EXPECT AS PUBLIC SERVICE
ANTS ANDIME SHARING THIS BECAUSE
I WANT YOU TO SEE THAT THESE
CORE VALUES TIE DIRECTLY INTO
THE BENEFITS FROM FULFILLING THE
OBJECTIVES WE DEVELOPED IN OUR
LANGUAGE PATHOLOGISTS RANGE
PLAN.
SO OUR PLANS VISION, WE'RE
STEPPING MORE INTO OUR CORE
VALUES BY MOVING TOWARD A
PRODUCT MODEL, BETTER SERVICE
AND FOCUS ON OUR USERS.
INCREASING OVERALL DIGITIZATION,
DIGITAL ASSETS AND
INTEROPERABILITY OF OUR SYSTEMS
TO ENHANCE DISCOVERABILITY AND
ACCESS TO ALL USERS.
AND THIRD, BY OPTIMIZING OUR
OPERATIONS TO IMPROVE
EFFICIENCIES, ALLOWINGITOUS
BUILD A NEW CAPACITY, AND
SUPPORT OF NEW WORK AND NEW
OPPORTUNITIES AS WE GO FORWARD.
NEXT SLIDE.
AS A NATIONAL LIBRARY WE PROVIDE
RESOURCES TO A BROAD, GLOBAL AND
DIVERSE USER BASE.
IN ORDER TO PROVIDE THE BEST
POSSIBLE USER EXPERIENCE, WE ARE
LEVELING UP OUR PRODUCT AND
SERVICE AGILITY MIND SET TO
TRULY KNOW AND ANTICIPATE OUR
CUSTOMER'S EXPECTATIONS.
CUSTOMER SERVICE OR CX, IS A
FOCUSED AREA FOR NLM, ALONG WITH
THE REST OF THE FEDERAL
GOVERNMENT, WE AIM TO PROVIDE A
SMOOTHER EXPERIENCE ACROSS OUR
PRODUCTS AND PLATFORMS TO
ENHANCE INFORMATION ACCESS,
CATALYZE HEALTH SCIENTIFIC
DISCOVERY AND FACILITATE
KNOWLEDGE INTO PRACTICE.
NEXT SLIDE.
IN TODAY'S REALITY IS THAT NEW
AND DIFFERENT CHALLENGES EXIST
FOR LIBRARIES TODAY DUE TO
RAPIDLY CHANGING DIGITAL AND
FORMAL EXPECTATIONS NEW FOR
STORING INFORMATION AND RAPID
EVOLUTION OF SCIENCE.
WE ARE RECONNING WITH THE
COMPLEXITY, SCOPE AND
INTERCONNECTEDNESS OF CHALLENGES
THAT INVOLVE GROWING INEQUALITY,
HEALTH DISPARITIES AND YOU HEARD
HEALTH AND DISINFORMATION AND
INTERCONNECTEDNESS OF CHALLENGES
THAT INVOLVE GROWING IN EQUALITY
AND SHIFTS IN TECHNOLOGICAL AND
SOCIAL SYSTEMS.
USERS WANT TRUSTED INFORMATION
WITH A CLICK FROM WHEREVER THEY
ARE AND IN WHATEVER FORMAT THEY
WANT IT IN, I EXPECT THAT WITH
MY ONLINE EXPERIENCE AS WELL AND
THAT'S THE FUTURE THAT WE NEED
TO BUILD GOING FORWARD AND
THAT'S THE FUTURE WE'RE THINK
BEING IN LIBRARY OPERATIONS.
OUR 15 YEAR PLAN, INTENDS TO
IDENTIFY WHERE TO FOCUS OUR
EFFORTS, MAKE SHOULD CHANGES TO
PROVIDE SPACE FOR US TO REFOCUS
AND ADDRESS THESE CHALLENGES AS
NEW 1S POP UP.
NEXT SLIDE, PLEASE.
AND NLM HAS ACCESS TO TRUSTED
USERS AND INFORMATION FOR UPTO
DATE INFORMATION.
THIS IS NOT ALL-INCLUSIVE SO I
WANT TO MAKE SURE THAT ANY NLM
STAFF THAT DON'T SEE THEIR
PRODUCT ON HERE, IT WAS JUST TO
MAKE A POINT.
AND WE'VE BEEN EVALUATING AND
RIGHT SIZING OUR OPERATIONS AND
PRODUCTS SINCE 2018 BY REDUCING
DUPLICATION ACROSS SYSTEMS AND
PLATFORMS AND INFORMATION
RESOURCES COMBINING LIKES, AND
LETTING GO IF A PRODUCT IS NO
LONGER WITHIN SCOPE OR IF IT
FALLS UNDER ANOTHER AGENCY'S
PERVIEW.
TO HELP USERS MORE EASILY
NAVIGATE OUR PRODUCTS AND
SERVICES WE ARE HARNESSING DATA
SCIENCE TO UNIFY OUR PLATFORMS
AND DATABASES TO BE MORE
INTEROPERABLE FOR GREATER
DISCOVERY.
WE'RE ALSO MAKING OUR INTERFACES
CONSIPTENT FOR MORE SEAMLESS
USER EXPERIENCE USING ANALYTICS
AND BEST USER DESIGNED
PRACTICES.
NEXT SLIDE, PLEASE.
SO WITH THIS BACKGROUND IN MIND,
I WILL FLIP THE PAGE ON TO THE
NEXT CHAPTER IN OUR JOURNEY AND
WALK YOU THROUGH OUR LONG RANGE
PLAN AND HOW WE GO THE TO WHERE
WE ARE TODAY.
SO NEXT SLIDE.
SO WE TOOK A VERY THOUGHTFUL
APPROACH TO DEVELOPING THE LONG
RANGE PLAN ENGAGING STAFF AT ALL
LEVELS.
IN FACT, MY SENIOR MANAGEMENT
TEAM IN OUR DIVISION, WE STEP
BACK AND WE ASKED UNIT LEVEL
MANAGERS TO LEAD THE DEVELOPMENT
OF THEIR PLAN FOR THE FUTURE.
WE FIGURED OR MAYBE WE'RE HOPING
THAT THEY WILL CONTINUE TO BE
AROUND MEANING MANY PARTS OF THE
PLAN OVER THE NEXT 15 YEARS, 13
NOW, AND THEY SHOULD HAVE A KEY
ROLE IN CRAFTING IT AND IT WAS
VERY EXCITING TO SEE HOW ALL OF
THAT UNFOLDED AND WHERE THEY
WANT TO TAKE THINGS.
NEXT SLIDE. WE ALSO FOCUSED ON
GATHERING FEEDBACK EXTERNALLY
WITH DISCUSSION FROM
STAKEHOLDERS, RESPONSES TO
RFIs AND REVIEWS OF DATA AND
USER FEEDBACK.
HERE YOU CAN SEE A SAMPLING OF
SOME OF THE ACTUAL SUBMISSIONS
FROM USERS TO OUR CUSTOMER
SERVICE PORTAL.
SO THROUGHOUT THIS COMBINED
FEEDBACK PROCESS, WE SAW SOME
COMMON THEMES EMERGE.
AND THESE ARE THAT WE NEED TO
MAKE OUR COLLECTION AND
INFORMATION WE PROVIDE
ACCESSIBLE TO ALL USERS AND
PROVIDE TRANSLATION OPTIONS FOR
ENGLISH, NONENGLISH SPEAKERS
[CHECK]
WE NEED TO FACILITATE TRAITING
AND MORE COLLABORATION ACROSS L.
O. AND NLM DIVISIONS AND ENHANCE
SKILLS TO ADAPT TO THE FUTURE
WORK MEANS.
WE NEED TO PRIORITIZE
DIGITIZATION OF OUR RESOURCES
AND EXPOSE THEM TO USERS IN NEW
WAYS.
AND WE NEED TO EMBRACE AN
INNOVATIVE, FLEXIBILITY AND
AGILE MIND SET WHEN IDENTIFYING
SOLUTIONS AND IMPLEMENTING
CHANGE.
NEXT SLIDE.
OKAY.
SO THESE ARE THE TOP LEVEL GOALS
OF OUR STRATEGIC OR OUR LONG
RANGE PLAN, MY APOLOGIES, SO
GOAL 1 IS TO CREATE A MODERN
ORGANIZED STRUCTURE.
GOAL 2 IS TO UNIFY AND TRANSFORM
THE NLM COLLECTIONS.
GOAL 3 IS TO SUPPORT AND PROMOTE
THE USE OF HEALTH DATA STANDARDS
AND TERMINOLOGIES, GOAL 4 IS TO
PROVIDE CUSTOMER DESEEN AND
EXPERIENCE AND GOAL 5 IS TO KNOW
IS EQUITABLY ENGAGE OUR USERS.
NEXT SLIDE.
SO NOW I'M GOING TO GO A LITTLE
BIT DEEPER INTO EACH 1 AND TELL
YOU SOME OF THE STUFF WE'RE
WORKING ON.
SO GOAL 1 CREATE A MODERN
ORGANIZATIONAL STRUCTURE, WE'RE
FOCUSING ON INCREASING
EFFICIENCIES, BY REMOVING
DUPLICATION AND EMBRACING
TECHNOLOGICAL CAPABILITIES.
TO MEET OBJECTIVE A THAT YOU SEE
HERE, WE WILL STREAMLINE LIKE
FUNCTIONS AND CENTRALIZE OUR
WORK TO IMPROVE EFFICIENCIES
ACROSS THE NEWLY REORGANIZED
DIVISION.
IN ADDITION TO THAT, WE'RE
WORKING ON OBJECTIVE B, AND SOME
OF THE THINGS THAT ARE GOING ON
THERE, IS WE'RE UNIFYING OUR
OCWIMBERLY CISIONS PROCESSES FOR
COLLECTING OUR MATERIAL,
UNIFYING OUR CATALOGING
PROCESSES, ACROSS THE DIVISIONS
NOW, AND CREATING A SINGLE POINT
OF CUSTOMER SERVICE AND AN
INTEGRATIVE READING ROOM.
NEXT SLIDE.
GOAL 2 IS TO UNIFY AND TRANSFORM
THE NLM COLLECTION.
WITH THIS WE'RE FOCUSING ON
CREATING A SINGLE ORGANIZATION
HOME FOR A UNIFIED COLLECTION,
WE BELIEVE THAT ALL OF OUR
MATERIAL SHOULD BE A ASSESSED
AND PRESERVED FOR FUTURE USERS
REGARDLESS OF DATE, FORMAT, A
PHYSICAL PIECE OR BORN GIJITTAL
CONTENT.
A FEW THINGS WE'RE ACTIVELY
WORKING ON IN OBJECTIVE A ARE
WE'RE LOOKING AT ASSESSING
PRESERVATION AND CONSERVATION
ACTIVITIES.
WE'RE DOING AN INVENTORY TO
ACCESS THE AND THE DAILY BASIS
THEA STRUCTURES--DATA STRUCTURES
OF ALL NLM PRODUCTS AND SERVICES
THINKING ABOUT HOW CAN WE TURN
THAT INTO A MORE AMAZON LIKE
EXPERIENCE SO YOU DON'T HAVE TO
GO TO 5 DIFFERENT PLATFORMS TO
GET A FULL PICTURE.
AND WE'RE INSURING THAT WE HAVE
A READY COLLECTION EMERGENCY
PREPAREDNESS RESPONSE AND
RECOVERY PROCESS FOR THE
UNFORTUNATE EVENT THAT MIGHT
COME UP WHICH WE OFTEN RUN INTO,
SUCH AS FLOODING OR MOLD GROWTH,
MOLD GROWTH IN THE COLLECTIONS
THAT WE'VE DEALT WITH IN RECENT
YEARS AND WE HAVE THROUGHOUT OUR
HISTORY SO WE NOW--IT'S ONLY THE
BETTER THING TO BE PREPARED.
GOAL 3,--NEXT SLIDE--THANK YOU.
IS TO SUPPORT AND PROMOTE THE
USE OF HEALTH DATA STANDARDS AND
TERMINOLOGIES.
WE'RE ESTABLISHING A HEALTH DATA
STANDARDS BRANCH IN OUR NEW
ORGANIZATIONAL VISION WITH A
GOAL TO LEAD AND MANAGE OUR
PORTFOLIO OF HEALTH DATA
STANDARDS PRODUCTS AND TOOLS
ACROSS THE LIBRARY.
WE ALSO DRAFTED COMPETENCIES WE
NEED TO LOOK AHEAD OF THIS
BRANCH, TO LEAD OUR UPDATED
STANDARDS, AND WE ARE THIS CLOSE
TO PUSHING OUT A RECRUITMENT
ANNOUNCEMENT, SOPHISTICATEDY
THAT'S SOMETHING OF INTEREST OR
IF YOU KNOW SOMEONE THAT WILL BE
A GREAT CANDIDATE, PLEASE REACH
OUT TO ME.
NEXT SLIDE.
GOAL 4 IS TO DELIVER CUSTOMER
DESIGN AND EXPERIENCE SUPPORT,
CX, THE GOAL FOR THIS IS TO
ESTABLISH A CUSTOMER EXPERIENCE
STRATEGY AND A COMMON SET OF
DIGITAL GOVERNMENT PRACTICES AND
STANDARDS ACROSS OUR PRODUCTS
AND SERVICES.
ULTIMATELY AS MENTIONED EARLIER,
OUR GOAL IS TO HAVE A UNIFORM
LOOK AND FEEL TO OUR PRODUCTS
AND WEBSITE SO THAT USER CANS
SEAMLESSLY EXPLORE ACROSS ALL OF
OUR INFORMATION RESOURCES.
AND JUST LIKE OUR HDS BRANCH
WE'RE THIS CLOSE TO RECREATING A
CX HEAD FOR L. O. SO AGAIN
APPROXIMATE THAT'S OF INTEREST
PLEASE REACH OUT.
NEXT SLIDE.
AND GOAL 5 IS TO KNOW AND
EQUITABLY ENGAGE OUR USERS.
WE ARE IMPROVING THE PRECISION
AND EFFECTIVENESS OF DELIVERING
HEALTH INFORMATION ESPECIALLY
FOR VULNERABLE OR SPECIAL
POPULATIONS, THIS WORK IS BEING
LED BY THE RECENTLY DEVELOPED
OFFICE OF ENGAGEMENT AND
TRAINING WITH PLANS TO DELIVER
EQUITABLE ENGAGEMENT PROGRAM,
MAINTAIN RELATIONSHIPSENTIOUS
SPECIALLY ACROSS NIH, TO AMPLIFY
ALL OF THE OUTREACH AND
ENGAGEMENT ACTIVITIES AND BUILD
A SUSTAINABLE INFRASTRUCTURE AND
USHED REPRESENTED COMMUNITIES
AND OF COURSE COMPLEMENT OTHER
GOVERNMENT WIDE INITIATIVES.
NEXT SLIDE.
SO TO SUMMARIZE, THESE ARE THE
DIFFERENT AREAS HIGHLIGHTED IN
YELLOW THAT WE HAVE BEEN WORKING
ON, SO OUR FIRST YEAR WAS THE
CREATION OF OUR PLAN, THE SECOND
YEAR WAS PUT TOGETHER
IMPLEMENTATION PLANS FOR EACH OF
THESE OBJECTIVES AND RIGHT NOW
WE'RE INTO THE--WE'RE IN THE
LET'S GO AHEAD WITH ANY LOW
HANGING FRUIT AND WE CONTINUE TO
WATCH THE LANDSCAPE AS WE
CONTINUE TO PIVOT.
NEXT SLIDE.
SO IN TOTAL FOR OUR FIRST YEAR
OF IMPLEMENTATION
RECOMMENDATIONS WE HAD A TOTAL
OF 60 PROPOSED BY STAFF AND 30
OF THEM ARE IN PROCESS THIS YEAR
ALONE.
AND TO GIVE YOU A LITTLE MORE
PERSPECTIVE WE HAD 10 IMP
LESMATION TEAMS COMPRISED OF
ONE-THIRD OF OUR DIVISION STAFF
SO A LOT OF PEOPLE ARE INVOLVED
WITH THIS AND OTHER PARTS ARE
THE LIBRARY THAT PARTICIPATE
INDEED SETTING STAGE FOR A ROLL
OUT AND THIS IS PRETTY
IMPRESSIVE AND I WOULD LIKE TO
JUST TAKE A MOMENT TO RECOGNIZE
ALL OF THE NLM STAFF THAT HAVE
BEEN INVOLVED IN THE IT'S BEEN A
MONUMENTAL ACHIEVEMENT AND WE
ARE MAKING IT HAPPEN TOGETHER.
SO THANK YOU TO EVERYONE.
NEXT SLIDE.
SO WHAT IS NEXT ON THE HORIZON?
SO NOW YOU MIGHT THINK THAT'S A
LOT TO RULE OUT SO WE DO NOT
WORK IN A VACUUM AND WE HAVE
PLENTY OF OTHER INITIATIVES TO
SUPPORT ACROSS THE LIBRARY AND
BEYOND.
WE'RE NONAPOPTOTIC YOU GOING TO
PIVOT INTO WAIS UNFOLDING ON THE
HORIZON INCLUDING, YOU KNOW OPEN
SCIENCE, AND GENERATIVE AI WHICH
IS A NEW THING THAT I'M VERY
INVOLVED WITH.
NEXT SLIDE.
SO AS MANY OF YOU KNOW THE
WHITE HOUSE OFFICE OF SCIENCE
AND TECHNOLOGY POLICY OFFICIALLY
DESIGNATED 2023 THE YEAR OF OPEN
SCIENCE FEATURING ACTIONS ACROSS
THE FEDERAL GOVERNMENT TO
ADVANCE NATIONAL OPEN SCIENCE
POLICY, PROVIDE ACCESS TO
RESEARCH, ACCELERATE INNOVATION,
PROMOTE PUBLIC TRUST, IS AND
DRIVE MORE EQUITABLE OUTCOMES SO
WE'RE EMBRACING IN LIBRARY
OPERATIONS AND PROCESSES ACROSS
NLM AND SUPPORTING THESE THROUGH
A VARIETY OF WAYS.
INCLUDING FINDING WAYS TO
PROMOTE OUR LARGE, OPEN DATA AND
OPEN RESOURCES PROVIDING TOOLS
AND TRAINING THROUGHOUT NLM AND
OUR NETWORK AS YOU SAW AND TO
NAME A FEW OF THESE INITIATIVES
THAT WE'RE SUPPORTING IS ALL OF
US, THE HEAL INITIATIVE, RAD-X,
THE DATA HUB, STRIDES
INITIATIVE, PUB MED CENTRAL,
YOU'VE SEEN CHANGES GOING ON
WITH THAT INCLUDING OPENING UP
TO SPANISH LANGUAGE AND OUR
COMMON DATA REPOSITORY FOR
HELPING TO STANDARDIZE DATA
ACROSS DIFFERENT RESEARCH.
AND THEN THERE'S A LOT OF BUZZ
GOING ON WITH GENERATIVE AI SO
LET ME JUMP RIGHT INTO THAT.
NEXT SLIDE, PLEASE.
OKAY, TIME FOR HOPE, THIS IS THE
QUESTION: GPT IS A POWERFUL
ARTIFICIAL INTELLIGENCE
COMMUNITY AND IT'S BECOMING
POPULAR SINCE DECEMBER OF LAST
YEAR.
IT'S POPULAR BECAUSE IT'S EASY
TO USE AND I THINK AS YOU
HEARTED, JIM MENTIONED ALSO,
IT'S ITERATIVE AND IT'S BASED ON
HUMAN LIKE CONVERSATIONAL
LANGUAGE, IT CAN RECALL AND
BUILD UPON VAST AMOUNTS OF TEXT,
SYNTHESIZE LARGE DATA SETS AND
EVEN GENERATE ART, IMAGERY,
MUSIC AND IT'S ALL BASED ON
CONVERSATIONAL PROMPTS.
MANY OF US ARE EXPERIMENTING
MYSELF INCLUDED WITH GPT AND
FINDING IT FASCINATING TO SEE
SOME OF THE POTENTIAL AND
CREATIVE SOLUTIONS SURROUNDING
IT.
JUST TO NOTE, AS OF TUESDAY,
WE'VE HAD OVER 300, I THINK IT'S
LIKE 340 ARTICLES IN PUB MET AND
COUNTING THAT REFERENCE CHAT GPT
IN THE ARTICLE AND WE HAVE AT
LEAST 5 CITATIONS IN PUB MED
THAT LIST CHAT GPT AS AN AUTHOR
OR CORPORATE AUTHOR AND WE WILL
TOUCH ON THAT A LITTLE BIT MORE.
SOME WOULD SAY THAT IT'S NOT ALL
GOOD NEWS, AS WE KNOW SOME
MODERN TECHNOLOGIES CAN GO INTO
NEFARIOUS USES SUCH AS SPREADING
DISINFORMATION AND HATE SPEECH.
SO WE ARE REALLY WATCHING SOME
OF THIS AND HOW IT CAN UNFOLD.
NEXT SLIDE.
SO I THOUGHT IT WOULD ALSO BE
HELPFUL TO GET INTO BASIC
DEFINITIONS SOPHISTICATEDY THAT
WE ALL HAVE A SHARE OF
UNDERSTANDING, SO CHAT BOT IS A
TOOL DRIVEN BY ARTIFICIAL
INTELLIGENCE, AUTOMATED RULES,
NATURAL LANGUAGE PROCESSING AND
MACHINE LEARNING TO PROCESS DATA
TO DELIVER RESPONSES TO REQUESTS
OF ALL KINDS.
ARTIFICIAL INTELLIGENCE BROADLY
REFERS TO THE IDEA OF COMPUTERS
THAT CAN LEARN AND MAKE
DECISIONS IN A HUMAN LIKE
GENERATIVE AI IS A LARGE
LANGUAGE MODEL OR LLM THAT CAN
RECOGNIZE, SUMMARIZE TRANSLATE
AND PREDICT GENERATE TEXT AND
OTHER CONTENT BASED ON KNOWLEDGE
GAIN FRIDAY MASSIVE DATA SETS.
SO I TOUCHED ON IT BREFLY BUT
LET'S TAKE A MOMENT TO
DIFFERENTIATE GENERATIVE AI SO
DIFFERENT AND TRANSFORMATIVE
COMPARED TO OTHER AI FIELDS.
FIFORTD IT'S A CONVERSATIONAL
AND INTUITIVE INTERFACE THAT CAN
GENERATE LANGUAGE AND IT MAKES
IT EASIER FOR PEOPLE TO
COMMUNICATE WITH MACHINES AND
ACCESS INFORMATION
INSTANTANEOUSLY.
GONE ARE THE DAYS OF CLUNKY
INTERFACES SORE NEEDING TO KNOW
SPECIAL SYNTAX OR FORMAT IN A
PARTICULAR WAY.
IT'S LEVELING THE PLAYING FIELD
NOW WE'RE ALL CAPABLE OF USING
LANGUAGE TO INTERACT WITH HIGHLY
INTELLIGENT MACHINERY.
SECOND, THE ON-DEMAND CREATION
OF ENTIRELY NEW CONTENT THROUGH
DATA, IMAGES, SOUNDS OR OTHER
TYPES OF INFORMATION IS
AVAILABLE.
THE ALGORITHM DYNAMICALLY
ADJUSTS TO ITERATIVE PROMPTING.
AFTER EACH OUTPUT, YOU CAN ASK
IT TO CHANGE ITS TONE AND
INFLECTION, EMPHASIS OR ANY
OTHER REQUIREMENT AND IT WILL
GENERATE A NEW OUTPUT.
AND IN THE PROCESS WE'RE ALL
HELPING IT LEARN ALONG THE WAY.
I WANT TO POINT OUT THAT LITTLE
EXPOLICEMANNATION POINT, THE
KNOW BEFORE YOU GO, AS I
MENTIONED EARLIER EVERYTHING YOU
ARE PUTTING INTO THOSE BOXES IS
ALL PART OF THE LEARNING PROCESS
FOR THE AI.
AND THIRD, CAN YOU THINK OF
GENERATIVE AI AS 1 OF THOSE
MULTITOOL THINGS, IT'S USEFUL IN
A VARIETY OF SITUATIONS AND
SOMETIMES UNEXPECTED WAYS.
THIS VERSATILITY MAKES THEM
USEFUL IN A WIDE RANGE UPONA
APPLICATIONS FROM CONTENT,
CREATION, TO FRAUD DETECTION, SO
FOR THESE REASONS GENERATIVE AI
REPRESENTS A SIGNIFICANT STEP
FORWARD IN THE DEVELOPMENT OF
EVEN MORE POWERFUL AI SYSTEMS IN
OUR FUTURE.
NEXT SLIDE, AND WHILE CHAT GPT
OR BAR ARE ON THE TOP OF
EVERYONE'S TONGUES, THEY ARE NOT
THE ONLY GAME IN TOWN AND I
THROUGH THIS IN TO GIVE YOU SOME
OF THE THINGS WE'RE WATCHING,
THERE'S A LOT GOING ON.
AND WHILE THE FUTURE OF OF EACH
OF THESE PRODUCTS IS YET
UNKNOWN, 1 THING IS CLEAR, THE
CHAT BOX ARE NO PASSING FAD.
NEXT SLIDE.
SO HOW COULD THE STRENGTHS OF
GPT BE LEVERAGED IN A DISSK
LANDSCAPE.
SO FOR 1, THEY CAN MANAGE
COMPLEX DATA SETS MOREENTIOUS
FICIENTLY, AND EVEN SUZANNE
[INDISCERNIBLE] WITH ARP A-H,
TALKED ABOUT THAT THIS AT THE
LAST SCIENCE TOWN HALL AND
THINKING ABOUT WAYS TO INTEGRATE
IT.
THEY CAN NOT ONLY PREDICT TRENDS
BASED ON DATA BUT ALSO FORM
INTERESTING CONNECTIONS BETWEEN
SOURCES AND INFORMATION BEYOND
HUMAN CAPACITY, AGAIN IN A
CONVERSATIONAL WAY, IT CAN SEE
PART OF THE EAR AND MAYBE A
WHISKER AND SAY MAYBE THAT'S A
CAT.
AS IT CONTINUES TO LEARN.
IT CAN GENERATE NEW IDEAS AND
HYPOTHESIS, POTENTIALLY LEADING
TO NEW DISCOVERIES, ASSIST IN
DESIGNING EXPERIMENTS AND
OPTIMIZING EXPERIMENTAL
PARAMETERS.
FACILITATE THE NEW DRUGS AND
MATERIALS AND I THINK AS
MENTIONED EARLIER WITH PHILLIP
IS, YOU KNOW IS IT--COULD IT BE
A TOOL TO SPEED THE PEER REVIEW
PROCESS OR THINK ABOUT HOW TO
INTEGRATE IT INTO HELPING US DO
OUR WORK MORE EFFICIENTLY.
NEXT SLIDE?
SO NOW I WILL POP ON INTO A
COUPLE OF USE CASES BECAUSE I
FIND THEM INTERESTING TO SHARE.
SO THIS 1 IS A GROUP OF STANFORD
UNIVERSITY FOLKS GOT TOGETHER
AND CRATED BIOMED LM, WHICH IS A
DOMAIN SPECIFIC LANGUAGE MODEL
AND TAPS INTO THE PUB MED
CENTRAL'S VAST COLLECTION OF
BIOMEDICAL LITERATE AND YOU ARE
PUB MED'S ABSTRACTS AND THEY'RE
USING IT TO ASSIST RESEARCHERS
AND HEALTHCARE PROFESSIONALS IN
CREATING SOLUTIONS AND SOLVING
COMPLEX MEDICAL QUESTIONS FROM
ALL OF THOSE VAST AMOUNTS OF
INFORMATION AND THEY PUT IT TO
THE TEST BY ANSWERING THE U.S.
[INDISCERNIBLE] MEDICAL SCHOOL
LICENSING EXAM QUESTIONS AT AN
IMPRESSIVE RATE OF SUCCESS AS
CAN YOU SEE HERE.
SO THE RESULS DO MAKE A
COMPELLING CASE THAT MAYBE
THERE'S POTENTIAL APPLICATIONS
AS GPT AS AN EDUCATIONAL TOOL
SUPPORT ITERATIVE LEARNING.
NEXT SLIDE, PLEASE.
AND LIKE IT OR NOT, CHAT GPT AND
SIMILAR GENERATIVE AIs HAVE A
TREMENDOUS POTENTIAL TO ASSIST
IN SCIENTIFIC WRITING.
MEDICAL RESEARCHERS AND
SCIENTISTS AS I NOTED, THE STUFF
IN PUB MED ALREADY ARE USING IT
TO DRAFT ARTICLES AND ABSTRACTS,
SUMMARIZE DATA, BUILD STRUCTURE
FOR PUBLICATIONS AND GET
SUGGESTIONS FOR REFERENCES.
I'M NOT SAYING IT'S ALL
ACCURATE, IT'S A USE BUT
VERIFIED MENTALITY WITH THIS.
IN A RECENT STUDY SHOWED OW CHAT
GPT CAN SUCCESSFULLY PRODUCE
REALISTIC AND CONVINCING
SCIENTIFIC ABSTRACTS AS NOTED BY
SOME OF THE REVIEWERS IN THE
STUDIES WHO INDICATED THAT IT
WAS REALLY SURPRISINGLY
DIFFICULT TO DIFIENTIATE BETWEEN
THE ORIGINAL AND GENERATED
ABSTRACTS.
NEXT SLIDE.
AND WHILE THERE ARE
POSSIBILITIES OUT THERE, THERE'S
ALSO LIMITATIONS.
AND BECAUSE I COULD, I ASK CHAT
GPT SOME OF THE THING TO
CONSIDER OF THE SCIENTIFIC
LANDSCAPE AND THIS IS MEN AND
WOMEN IT GENERATED AND THIS WAS
PRETTY GOOD AND SOME OF THE
THINGS WE'RE THINKING ABOUT,
ACCURACY AND RELIABILITY,
REPRODUCIBILITY, AUTHORSHIP AND
ATTRIBUTION, ETHICAL
CONSIDERATIONS, YOU KNOW HOW IS
IT INTRODUCING DATA PRIVACY,
BIAS AND ACCOUNTABILITY,
INTELLECTUAL PROPERTY, COST AND
ACCESSIBILITY.
THIS 1 WAS INTERESTING BECAUSE
IT COSTS A SIGNIFICANT AMOUNT OF
MONEY TO PROCESS AND GENERATE
ALL THIS HUGE AMOUNTS OF DATA
BUT ALSO IT COULD LEAD TO
INCREASED DISPARITIES AND
SCIENTIFIC PUBLISHING AND HINDER
PROGRESS IF THERE BECOMES A
PAPER USE TYPE OF ENVIRONMENT TO
ACCESS THIS.
NEXT SLIDE?
SO NOW LET'S TAKE A CLOSER LOOK
AT BIAS AND INTERPRETABILITY
USING A RADIOLOGY USE CASE.
SO DEEP NEURAL NETWORKS WERE
TRAINED USING IMAGES OF SKIN
LESIONS AND THEY CLASSIFIED
MALIGNANT VERSUS BEHIND
MELANOMAS WITH A HIGH DEGREE OF
ACCURACY, HOWEVER IT WAS LATER
FOWBD THAT IMAGES OF LESIONS
THAT INCLUDED THE RULERS, YOU
CAN SEE IN THAT IMAGE WERE
CLASSIFIED AS MALIGNANT BECAUSE
THE MODEL LEARNED THAT WHEN THE
RULER WAS INCLUDED IN THE IMAGE,
THE LESION WAS MUCH MORE LIKELY
TO BE MALIGNANT.
THIS BIAS WAS INTRODUCED BECAUSE
RUMORS WERE INCLUDED WITH RUMORS
IN IMAGES WHERE THE CLINICIAN
THOUGHT THE LESION WAS MORE
LIKELY TO BE MALIGNANT.
SO IF THE RULERS WERE NOT
DETECTED, THE MODEL WOULD HAVE A
HIGH FALSE-NEGATIVE RATE FOR THE
IMAGES WHICH IS SOMETHING TO
THINK ABOUT.
NEXT SLIDE.
OKAY, BACK TO NLM AND OUR WORLD
AND WHAT ARE WE THINKING ABOUT
AND WATCHING AND SEEING IT ON
OUR HORIZON.
SO THE FACT THAT CHAT BOTS ARE
LISTED AS AUTHORS IN PUB MED IS
A BIG DEAL SINCE IT DOES NOT
MEET THE CRITERIA REQUIRED TO BE
AN AUTHOR, ORGANIZATIONS LIKE
ICMJE AND WAME, WILL BE DEFINED
AS NAGDZAL JOURNAL EDITORS AND
THE WORLD ASSOCIATION OF MEDICAL
EDITORS AND OTHER PUBLISHERS
HAVE CLEARLY DEFINED ROLES AND
EXPECTATIONS OF AUTHORS WITH
THOUGHTS NOT FITTING THOSE
DEFINITIONS, SO WE WILL SEE HOW
ALL THAT ROLLS OUT.
IN A RECENT DISCUSSION WITH IA
GROUP OF EDITORS SOMEONE BROUGHT
UP THE POTENTIAL FOR USING
GENERATIVE AI FOR HELP FOR
WRITING SUMMARIES FOR AUTHORS
THAT BROUGHT UP MANY CONCERNS AS
WE TALKED ABOUT EARLIER WITH,
YOU KNOW PEOPLE DIDN'T
UNDERSTAND THAT UPLOADING ANY
MANUSCRIPTS OR GRANTS OR
CONTRACTS TO ASSIST WITH
CREATING THE VIEWS IS ACTUALLY
BREECHING THE AUTHORS AND
PRESENTERS CONFIDENTIALITY.
AND AS YOU MIGHT SUSPECT, NLM
AND NIH DATA IS BEING HEAVILY
USED IN THESE LARGE LANGUAGE
MODELS, THE WASHINGTON POST
RECENTLY PUBLISHED AN
INDEPOSITION ANALYSIS
REVEALINGLET 15 MILLION WEBSITES
BEING USED TO INSTRUCT I THINK
IT'S CHAT GP4.
MANY OF THEM INCLUDED NCBI, MED
LINE PLUS AND NIH DOMAINS.
SO HOW ARE THEY USING IT?
WHAT IS THE VERSION?
THERE'S SO MANY QUESTIONS AROUND
THAT.
WE ARE ALSO WATCHING ISSUES
AROUND I. P. COPYRIGHT AND
PRIVACY AND IN MOST COUNTRIES,
INCLUDING THE U.S., COPYRIGHT IS
PROTECTION OF CREATED HUMAN
RESULTS AND HUMAN CREATIVE
EFFORT AND THERE'S A LOT OF TALK
THAT AI WILL TAKE PEOPLE'S JOBS
AND HOWEVER HISTORY DOES NOT
SUPPORT THIS.
IF YOU THINK ABOUT THE CREATION
OF THE INTERNET, WIKIPEDIA, WHEN
THEY FIRST LAUNCHED THERE WAS
FEAR AND INTERESTING
PREDICTIONS, ME PERSONALLY, I'M
ALL FOR LTD.ING THE MACHINES DO
SOME OF THE ROUTINE AND MUNDANE
WORK AND FREE UP TIME FOR OUR
STAFF TO FECUS ON THEIR
EXPERTISE SOY WITH THAT YOU WILL
THAT IN MIND, SOMEONE ASKED AT
ANOTHER MEETING DOES NIH NEED
MORE POLICY.
SO NEXT SLIDE.
OUR GOVERNMENT HAS PUBLISHED
SEVERAL EXECUTIVE ORDERS AND AN
AI BILL OF RIGHTS TO INSURE THAT
IT IS DEVELOPED RESPONSIBLY.
AS PROVIDERS OF THE TRUSTED
HEALTH INFORMATION, WE MUST
INSURE THAT AIS BEING AMRIED IN
WAYS THAT SUPPORT OUR NATION AND
MAINTAIN OUR LEVELS OF TRUST
WITH OUR USERS.
AND I THINK YOU JUST HEARD ABOUT
THAT WITH SOME OF THE STUFF
WE'RE LOOKING AT IN OUR OWN PUB
MED BEST MATCH ALGORITHM THAT
WE'RE LOOKING AT.
AND THE BOTTOM LINE IS THAT WE
MUST KEEP A WATCHFUL EYE TO HOW
THIS IS BEING IMPLEMENTED.
NEXT SLIDE.
SO FINALLY, I WAS CURIOUS ABOUT
HOW NLM STAFF ARE THINKING ABOUT
IMPLEMENTING OR USING THIS
TECHNOLOGY, SO I ASKED AROUND
AND I WANTED TO CLOSE THE
PRESENTATION TODAY WITH IDEAS
THAT ARE BEING TOSSED AROUND IN
OUR OWN ORGANIZATION.
SO STAFF SAID THAT IT COULD BE
LEVERAGED TO DEVELOP MORE
PRODUCTS MORE RAPIDLY.
FOR EXAMPLE, WRITING CODE,
AUTOMATING SCRIPTS FAPTURE,
CONVERTING FILES TO DIFFERENT
FORMATS, RECREATING INTERFACES,
TEST OR REPRODUCE FUNCTIONALITY
OR ASSIST IN THE OFFICE
PROGRAMMERS AND NONTECHYS ALIKE
TO PROGRAM IN LANGUAGES LIKE
SEQUEL AND PYTHON.
WE ALSO HEARD FROM ANOTHER
PERSON THAT SAID YOU COULD
ACCELERATE CUSTOMER SERVICE,
SUGGESTING YOU KNOW A SMORT BAT
FOR DOING CUSTOMER SUPPORT.
REALTIME AND ANOTHER PERSON
SAID, IT WOULD BE VERY HELPFUL
TO PROCESS LARGE AMOUNTS OF DATA
TO CREATE A STEP-BY-STEP PROCESS
TO COMPLEAT A COMPLEX TASK LIKE
ANALYZING ERROR LOGS, FIXING
ERRORS AND SUBMITTING QUESTIONS
FOR HUMAN REVIEW, SOME OF THOSE
THINGS THAT WE ACTUALLY NEED TO
ELECTRIC AT AND EVEN CREATING
USER DOCUMENTATION.
SO WITH THAT, I'M GOING TO END
HERE, NEXT SLIDE.
I HOPE THAT I'VE SHOWN THE WHY
OF OUR WORK IS REMAINING
UNCHANGED BUT THE WORLD AROUND
US IS CHANGING RAPIDLY AND WE'RE
CHANGING HOW WE WORK, TO MEET
THE NEEDS AND I HOPE THAT YOU
REALLY SAW IS HOW WE ARE DOING
OUR WORK AS KEEPING UP WITH THE
CHANGES ESPECIALLY INFORMATION
MANAGEMENT PRACTICES AND HOW WE
CAN MAKE USE OF NEW
TECHNOLOGIES.
SO WITH THAT I WILL TURN THE MIC
BACK OVER TO HIDE TOW HEAR YOUR
INSIGHTS AND I KNEW A COUPLE OF
SEED QUESTIONS UP THERE IF YOU
WANT TO GO INTO ANY OF THOSE.
HEIDI?
>>THANK YOU DIANE, THAT WAS A
REALLY TIMELY TOPIC AND A LOT OF
INFORMATION, WE ACTUALLY HAVE 2
DISCUSSANTS WHO ARE ASSIGNED SO
I WANT TO TURN TO THEM FIRST.
JENNIFER L UCCA, AND MARY
MAZANEC.
EITHER 1 OF YOU WANT TO KICK US
OFF?
>>HI, I WILL GO FIRST, IT'S
JENNY, AND AS A DAY JOB AT THE
CHILDREN'S INN, A HAVE A LOT OF
RESPECT FOR EVERYTHING YOU DO
THEA THE LIBRARY AND WE HAVE A
LOT OF PARTNERING OPPORTUNITIES
SO THANK YOU.
ONE IS JUST A COMMENT.
IT'S SO INTERESTING TO HEAR, YOU
KNOW WE ALL SORT OF FREAKED OUT
WHEN CHAT GPT FOR LACK OF A
APPROPRIATE WORD WHEN CHAT GPT
HAPPENEDDA THE END OF LAST YEAR,
MORE AND MORE I HEAR THIS
POSITIVE REFLECTION ON HOW WE
MIGHT BE ABLE TO USE IT TO
ACTUALLY INCREASE EFFICIENCIES
AND NOW THINKING ABOUT SCIENCE,
I NEVER THOUGHT I WOULD HEAR A
SCIENTIST SAY CHAT GPT MIGHT
ACTUALLY HELP US MOVE FORWARD.
SO THIS IS REALLY EXCITING AND
SOMETHING DEFINITELY FOR US TO
WATCH.
SO MY QUESTION FOR YOU IS GOING
BACK TO YOUR LONG RANGE PLAN,
WHICH IS LOFTY AND HAS BIG
GOALS, THAT WILL HAVE AN IMPACT.
I'M VERY INTERESTED TO
UNDERSTAND WHAT YOU LEARNED AND
WHAT YOU ARE WORKING TO RESPOND
TO IN THE AREA OF DEI AND IN
PARTICULAR, YOU SAID DISPARITIES
AND THE USE OF TECHNOLOGY.
I THINK THAT ALSO GOES ALONG
WITH GENERATIVE AI BY THE WAY,
BUT I'M JUST INTERESTED TO
UNDERSTAND WHAT YOU LEARNED IN
YOUR INITIAL EVALUATION AND
PREPARING FOR YOUR LONG RANGE
PLAN AND WHAT YOUR EARLY
THOUGHTS ARE IN ADDRESSING THOSE
CHALLENGES.
>>YEAH, THANK YOU.
AND THANK YOU FOR SUPPORTING THE
USE OF OUR PRODUCT AND SERVICES,
I KNOW WE'VE DONE A LOT OF WORK
WITH THE CHILDRENS AND
ESPECIALLY TRYING TO MAKE
INFORMATION ACCESSIBLE AND NICE
PACKETS THAT ARE NOT TOO SCARY
FOR PEOPLE.
SO AS FAR AS OUR DEIA ACTIVITY,
SO JUST WITHIN OUR COLLECTION,
WE ARE LOOKING AT OUR
COLLECTION, WHAT ARE WE--WE HAVE
A COLLECTION DEVELOPING
GUIDELINE MANUEL THAT IS ON THE
BOOK SHELF AND WE--THAT IS
PRETTY MUCH OUR--WHATEVER IT IS
CALLED OUR GUIDE BOOK AND WE USE
THAT FOR THINKING ABOUT WHAT ARE
WE COLLECTING AS TD NATIONAL
LIBRARY OF MEDICINE?
AND KEEP IN MIND THAT WE DO THIS
IN CONCERT WITH THE OTHER
NATIONAL LIBRARY.
SO MAYBE MARY WITH THE LIBRARY
OF CONGRESS AND PAUL WITH THE
AGRICULTURAL LIBRARY.
WE TRY TRY TO STAY IN OUR LANES
ON WHAT WE'RE CLICKING.
SO WHAT WE'VE BEEN LOOKING AT IS
OUR STAFF IS LOOKING AT WHAT ARE
WE COLLECTING AND WHERE ARE WE
COLLECTING IT FROM?
LANGUAGES AS WE MENTIONED
ANOTHER PART OF THIS, IT WAS THE
LAST MEETING, SORRY WHERE,
OPENING UP REVIEW FOR PUB MED
CENTRAL IN SPANISH AND STARTING
A LITTLE PILOT ON THAT TO SEE
HOW WITH THAT AS BEING 1 OF THE
MOST HIGHLY PUBLISHED AND 1 OF
MY STAFF WILL PROBABLY START
TEXTING ME FIELD FUNCTIONS GET
THIS WRONG BUT IT'S GOT A LARGE
USER BASE AND ESPECIALLY IN THE
U.S., WHERE SPANISH LANGUAGE IS
HIGHLY USED SO WE STARTED THAT
AND WE ARE LOOKING AT
APPLICATIONS TO PMC, WE'RE ALSO
AS PENNY MENTIONED WITH THE
PRESENTATIONS WE'RE FOCUSING ON
MAKING THE INFORMATION THAT WE
PRESENT MORE ACCESSIBLE AND
WE'RE DOING THAT IN A VARIETY OF
WAYS THROUGH ADDING TEXT, MAKING
SURE THAT WE'RE KEEPING
THINGS--WE'RE RESPECTING COLOR
ISSUES IN THE WAY THAT WE
PRESENT MATERIAL AND WE'RE
THINKING ABOUT HOW WE ACTUALLY
COMPOSE THE MATERIAL TO MAKE
SURE THAT SCREEN READERS AND
THINGS LIKE THAT CAN ADDRESS IT.
OTHER INITIATIVES THAT WE LOOK
AT AND I THINK YOU HEARD THIS
WITH THE REPORT OUT, A HUGE PART
OF OUR NETWORK IS REALLY HOPING
TO DO OUTREACH AND ENGAGEMENT IN
UNDERREPRESENTED AND POPULATIONS
AND REALLY HELPING TO SHOW WHERE
GOOD QUALITY INFORMATION IS.
THERE'S A LOT OF INTERESTING
STUFF OUT THERE ON SOCIAL MEDIA
SO SOME OF THE MISOR
DISINFORMATION WORK THAT WE'RE
COORDINATING ACROSS THE NETWORK
IS REALLY TOO ADDRESS THAT AND I
THINK THAT REALLY BECAME
IMPACTFUL DURING COVID AND A LOT
OF THE INFORMATION QUM BEING OUT
FASTER IS CHAT GPT, AND SO
PEOPLE ARE MAKING DECISIONS ON
THAT AND SO IT'S IMPORTANT FOR
US TO BE IN THERE AND WE'RE
DOING THAT IN SUPPORT WITH THE
ALL OF US PROGRAM WHERE THEY'RE
PULL NOTHING PARTICIPANTS AND
WE'RE TRYING TO MAKE SURE THAT
WE'RE PROVIDING ACCESS TO GOOD
INFORMATION AND PEOPLE--THERE'S
MORE TRANSPARENCY IN THOSE
COLLABORATIONS WITH THE
PARTNERS.
AND THEN IN OUR OWN WORKFORCE.
JUST FRIDAY, WE GET THE FEDERAL
EMPLOYEE VIEW POINT SURVEY AND 1
OF THE THINGS THAT WE DO LOOK IN
THERE IS YOU KNOW WE GET
RESPONSES AND WE GET EMPLOYEE
FEEDBACK AND WE WANT TO ADDRESS
THAT.
WE ALSO HAVE OUR REAP INITIATIVE
AND FOR THE LIFE OF ME I CANNOT
TELL YOU WHAT THAT STANDS FOR SO
ANYONE FROM NLM, IT'S THE RACIAL
AND ETHNIC EQUITY PLAN, I WAS
GOING TO SAY THAT BUT I DIDN'T
WANT TO GET IT WRONG, SO THANK
YOU.
SO WE HAVE A PLAN ADDRESSED AND
I BELIEVE THAT WAS ALSO
PRESENTED MAYBE AT THE LAST
BOARD MEETING BUT REALLY LOOKING
AT OUR OWN INTERNAL ORGANIZATION
AND OUR REPRESENTATION MAKING
THINGS MORE EQUITABLE, LOOKING
AT JUST THINGS FROM HOW WE DO OR
MORE, RECK NEGZ, OPPORTUNITIES
TO BE ON DIFFERENT COMMITTEES
AND THINGS LIKE THAT AND OF
COURSE, IN OUR HIRING, WE ARE
TRYING--OUR TRAINING PROGRAMS, I
KNOW WITH THE ASSOCIATE PROGRAM
WE PIVOTED TO DOING A FULLY
REMOTE BECAUSE WE FOUND THAT IT
WAS MAKING IT POSSIBLE FOR
PEOPLE TO BE ABLE TO BE A PART
OF THAT PROGRAM AND NOT HAVE TO
PICK UP AND MOVE AND START THEIR
LIVES IN A NEW PLACE AND
ESPECIALLY IN A VERY HIGH
POPULATED AREA LIKE D. C. FOR A
1 YEAR INTERNSHIP SO WE'RE
THINKING ABOUT DIFFERENT WAYS IN
OUR INFORMATION RESOURCES AND
WITH OTHER INITIATIVE IN SUPPORT
OF THE INFORMATION WE COLLECT,
WE DISSIMINATE IT AND OUR PEOPLE
AND OUR STAFF THAT MIC IT ALL
POSSIBLE.
DID ANYONE ELSE WANT TO ADD
ANYTHING ON THERE?
PROBABLY DIDN'T HIT ALL OF THE
NOTES BUT I THINK I TALKED ABOUT
THE FULL SCOPE.
>>THANK YOU.
>>THIS IS MARY MAZANEC, I TOO
WAS VERY MUCH INTERESTED AND I
APPLAUD YOUR EFFORTS ON ON
DIVERSITY AND I NOTED THE
COMMENT THAT THEY--WOULDN'T IT
BE NICE IF THIS INFORMATION WAS
IN MY NATIVE LANGUAGE AND AS WE
ALL KNOW THE COUNTRY IS BECOMING
MORE AND MORE DIVERSE, SPANISH
IS THE START, BUT YOU ALSO SAID
YOU HAVE A GLOBAL EADIENCE AND
IN ADDITION TO MAKING THE
LANGUAGE--MAKING MATERIALS
AVAILABLE IN THEIR NATIVE
LANGUAGE, I ALSO THINK ANOTHER
CHALLENGE IS THE WHOLE ISSUE OF
HEALTH LITERACY, I KNOW THE
SURGEON GENERAL HAD A PHOBEUS ON
THAT IN THE PAST.
SO I'M DPLAD TO HEAR YOU'RE
PARTNERING WITH OTHER ENTITIES
THAT MAY HELP ON THAT FRONT
BECAUSE TRANSLATING IT IS THE
FIRST STEP BUT IT'S REALLY
EXPLAINING IT ESPECIALLY FOR
PEOPLE WHO MAY NOT HAVE THE
BACKGROUND THAT YOU NEED TO
ACTUALLY TO STAY ON TOP OF
HEALTHCARE AND HEALTH
DEVELOPMENT SO THAT WOULD BE
ANOTHER THING I WOULD MENTION.
BUT I WANTED TO ASK QUESTIONS
ABOUT AI.
AT THE LIBRARY OF CONGRESS, I
RUN THE CONGRESSIONAL RESEARCH
SERVICE.
AND FOR THOSE WHO MAY NOT BE
FAMILIAR WITH THE CONGRESS
RESEARCH SERVICE, WE ARE
CONGRESS' THINK TANK SO TO
SPEAK.
I CAN TELL YOU CONGRESS IS VERY
MUCH FOCUSED ON ARTIFICIAL
INTELLIGENCE AND THE USE OF IT,
NOT ONLY FOR THE WORK THAT WE DO
ON OUR RESEARCH AND ANALYSIS BUT
ALSO THEY ARE CONCERNED ABOUT
THE REGULATION OF IT.
AND 1 OF THE CONCERNS THAT I
HAVE AS I LOOK AT THE USE OF AI
TO INFORM THE WORK WE DO FOR
CONGRESS IS WHETHER OR NOT, IT'S
AUTHORITATIVE.
AND YOU ACTUALLY MADE THE POINT
THAT, YOU KNOW THE MACHINE
LEARNS AND INCORPORATES
INFORMATION THAT MAY NOT BE
ACCURATE AND SO 1 OF MY CONCERNS
IS THAT HOW DO YOU--YOU ALMOST
HAVE TO HAVE A HUMAN IN THE
PROCESS TO CHECK THE
AUTHORITATIVENESS.
WE HAVE BEEN LOOKING AT SOME
INFORMATION GENERATED BY CHAT
GPT AND SOME OF THE REFERENCES
ARE FICTION, THEY'RE NOT REAL
REFERENCES.
THEY MADE UP REFERENCES.
THE OTHER 2 ISSUES THAT HAVE
BEEN RAISED ARE ALSO LEGAL
ISSUES REGARDING LIABILITY AND
FIRST AMENDMENT.
THIS NEW INFORMATION, IS IT
PROTECTED UNDER THE FIRST
AMENDMENT?
SO IF YOU HAVE ANY THOUGHTS
ABOUT THE REAL CONCERN IS THE
AUTHORITATIVENESS OF THE
INFORMATION THAT IS GENERATED.
EIGHTY%, THAT FIGURE YOU--IS
NOTED HIGH ENOUGH IN MY OPINION.
>>THE 86% OF--
>>YEAH, THE 86%, YOU HAD IT ON
1 OF YOUR SLIDES.
>>OH THE MEDICAL EXAM?
>>YEAH.
>>ACTUALLY THEY SAID IT WAS
PRETTY GOOD.
AND THE LEGAL, THEY HAD ANOTHER
DOMAIN SPECIFIC CHAT BOT THAT
WAS LOOKING THE A LOT OF PATENTS
AND LEGAL DECISIONS AND THAT WAS
1 ACTUALLY ANSWERED AT THE
91 PERCENTILE, WHICH IS
FRIGHTENING.
>>BETTER.
THAT'S AN A.
>>RIGHT.
IT'S INTERESTING, SO AS FAR AS 1
OF THE SLIDES I LEFT OUT BECAUSE
I RAN OUT OF TIME AND I THOUGHT
I CAN'T INCLUDE EVERYTHING, SO I
HAD TO PICK AND CHOOSE MY
FAVORITES, RIGHT?
BUT IS THAT, YOU KNOW THERE
IS--IT'S NOT JUST THE MACHINES,
THERE'S ALWAYS GOING TO BE A
CHECK, YOU KNOW, A USE BUT
VERIFY AND I THINK THAT IS 1 OF
THE MOST CRITICAL THINGS THAT
PEOPLE NEED TO CONSIDER WHEN
THEY'RE USING ANY OF THESE
APPLICATIONS, YOU KNOW, AND WE
DON'T KNOW IN THE WASHINGTON
POST ARTICLE THAT MENTIONED ALL
OF THE 15 MILLION WEBSITES.
YOU KNOW 1 OF THE THINGS I THINK
ABOUT WITH THIS IS THE OPEN AI
VERSION IS FROM 2 YEARS OLD AND
IT'S THINKING ABOUT COVID AND
EVERYTHING THAT JUST WENT ON.
YOU'RE GETTING OUTDATED
INFORMATION, SO, YOU KNOW THAT
SHOULD JUST, YOU KNOW BE A
MOMENT TO STEP BACK AND A, HUH,
IS THIS THE RIGHT STUFF BECAUSE
THINGS HAVE PROGRESSED OVER TIME
AS WELL.
SO, I THINK THE FIRST THING IS
THAT THERE'S ALWAYS GOING TO BE
SOME KIND OF HUMAN INTERVENTION
IN THE CREATION OF ANY KIND OF
ALGORITHMS, OUR OWN INCLUDED,
YOU KNOW DOING CHECKS AND
BALANCES ON WHAT IT IS DOING AND
HOW IT IS LEARNING.
THE SCIENCE, JUST THE RAPID
FIRE, JUST IN OUR OWN MED LINE
INDEXING, WE HAVE NEW CONCEPTS
COMING IN EVERY DAY AND WE
CONSTANTLY HAVE TO UPDATE THE
ALGORITHMS TO REFLECT THIS,
ESPECIALLY THINGS THAT USE
AMBIGUITY SO WITH THAT, I JUST
SAY, THERE IS--I DON'T KNOW IF I
WANT TO CALL IT REGULATION.
THERE'S BEST PRACTICES, THE AI
BILL OF RIGHTS AND I THINK WE'RE
MOVING IN THE RIGHT DIRECTION.
I'M APPROACHING IT WITH CAUTIOUS
OPTIMISM BUT I SEE, BENEFITS
WITH SOME EFFICIENCIES IN MY
WORK THAT I DO AND--BUT I DO
VERIFY AND TECHNOLOGY
ORGANIZATION THEM BECAUSE WHAT
I'VE ACTUALLY ASKED TO.
SO, I HOPE THAT ADDRESSED THIS A
LITTLE MARY.
>>IF I CAN STEP IN FOR A MINUTE
DIANE, AS CAN YOU IMAGINE THIS
IS A TOPIC THAT LOTS OF PEOPLE
ACROSS THE NIH ARE REALLY
INTERESTED IN RIGHT NOW.
AND I'M GETTING READY TO SPEAK
TO AN OUTSIDE GROUP.
ONE OF THE THINGS I WANT TO DO
IS JUST SHOW YOU THIS IDEA OF
WHERE DO YOU CHECK AND WHEN DO
YOU START CHECKING, THE NIST
FRAMEWORK WE SPOKE ABOUT EARLIER
IS ACTUALLY QUITE USEFUL AND SO,
I GIST--I'M NOT GOING TO GIVE A
LECTURE, BUT IN THE DEVELOPMENT
OF ALL AI SYSTEMS, NIST LAYS OUT
HOW AI ARE DEVELOPED, THERE'S A
PROBLEM ECINIZED, YOU CREATE AN
ALGORITHM, YOU ACQUIRE IT, YOU
THAT'S HARD WITH CHAT GPT
BECAUSE THERE'S MILLIONS AND
BILLIONS OF THEM.
YOU TRAIN EVALUATE, TRAIN,
EVALUATE TRAIN.
SO CAN YOU IMAGINE IN A
CRITICATE SITUATION, YOU WANT TO
DIAGNOSE IT FIRST WITH THE
PULMONARY EMBOL I, BUT IN
RESPONSE TO MARY'S QUESTIONS AND
OTHER PEOPLE'S QUESTIONS EVERY
STEP ALONG THE WAY IS AN
OPPORTUNITY FOR IDENTIFYING
VERIFYING AND CREATING
TRANSPARENCY AND THE CHALLENGE
WE FACE RIGHT NOW IS DEVISING
THE CHAIN OF TRUST THAT EACH OF
THESE STEPS WAS DREATIONZED AND
THAT THE COMMUNICATION ABOUT
WHAT WAS EVALUATED AND THE
PERFORMANCE AT THOSE VARIOUS
LEVELS IS ACTUALLY TRANSFERRED
TO THE NEXT LEVEL OF PERSON.
SO I ENCOURAGE YOU TO DO LOOK AT
THE NIST FRAMEWORK, IT'S HELPFUL
TO ABOUT GO BEYOND, YOU HAVE TO
VERIFY BECAUSE IT'S NOT REALLY
CLEAR WHAT YOU'RE VERIFYING AND
WHO SHOULD BE DOING THAT.
THIS MODEL IF YOU LOOK FOR
EXAMPLE, I THINK THE CLINICIAN
SHOULD BE INVOLVED IN
RECOGNIZING THE OPPORTUNITY,
EVALUATING AND USING THE OUTPUT
BUT I'M NOT SURE THE CLINICIAN
SHOULD BE INVOLVED IN CREATING
THE ALGORITHM SO THERE ARE A
NUMBER OF PEOPLE THAT NEED TO BE
INVOLVED AND WE NEED TO FIND
CROSS COMMUNICATIONS.
LECTURE OVER.
>>THANKS, PATTY.
WE WILL TURN TO PETER.
>>COMING OFF MUTE.
SORRY ABOUT THAT SO AS MANY OF
YOU KNOW, THE REAL DIFFERENCE IN
AI OVER THE LAST 20 YEARS HAS
BEEN THE AMOUNT OF WELL CURATED
AUTHORITATIVE DATA WE HAVE AND A
LOT OF THAT IS DUE TO THE NLM
AND WHEN YOU LOOK AT THE LARGE
LANGUAGE MODELS THEY DON'T HAVE
A SEMANTIC USHED PINNINGS AND
MANY OF US KNOW WHO WORKED WITH
THE LIBRARY FOR YEARS THAT THE
SEMANTIC UNDERPINNINGS ARE THE
ONLY BASIS BY WHICH YOU'RE GOING
TO GET TO CAUSALITY SO THIS SOME
OF THIS NOW HAS TO DO WITH
STATISTICAL OCCURRENCE AND THAT
OBVIOUSLY IS NOT GOING TO BE A
SAFE ENOUGH UNDERPINNING TO
CHANGE RADICALLY WHAT HAPPENS IN
MEDICINE.
BUT WE ALL CAN SEE THE
OPPORTUNITY FOR A MACHINE THAT
ACTUALLY IS AUTHORITATIVE TO GET
SERVICES OUT TO PEOPLE THAT
CAN'T GET TO THEM NOW WHICH IS A
REALLY TREMENDOUS OPPORTUNITY.
SO 1 OF THE THINGS WE'VE DONE
THAT ACTUALLY MICROSOFT IS VERY
INTERESTED IN FOR IMPROVING
THEIR GPT 4 MACHINE IS THAT AND
WE ACTUALLY PUBLISHED IN 1 OF MY
STUDENTS Ph.D. THESIS WHICH
WAS RECOGNIZED BY ACADEMIA, WE
SENT THE MACHINE ALGORITHM TO
MEDICAL SCHOOL AND TAUGHT IT ALL
THE THING FROMLET LIBRARY THAT
WE COULD GET HOLD OF SO IT WENT
THROUGH MED LINE PLUS AND
CLINICAL GUIDELINES AND
CLEARINGHOUSE AND WENT THROUGH
LITERATURE AND WENT THROUGH DRUG
DATABASES FROM THE PRODUCT
LABELS THAT ARE PART OF MED LINE
OR PART OF NOT ONLY PART OF MED
LINE PLUS BUT ALSO PART OF THE
LIBRARY, SO THIS WAS ABLE TO
ACTUALLY NOT ONLY PROVIDE MORE
ACCURATE ANSWERS WHEN ADDED TO
REAL DATA BUT IN ADDITION TO
THAT, IT WAS ACTUALLY LESS BIAS,
AND THE WAY WE CHECKED ON THE
BIAS WAS BOTH REMOVING DATA
RANDOMLY, AND ALSO WITH
INJECTING BAD DATA INTO THE
CIRCUMSTANCES AND THE 1 THAT HAD
PRETRAINED MEDICAL KNOWLEDGE
THAT COMES PRETTY MUCH ENTIRELY
FROM THE LIBRARY, WAS MUCH
BETTER THAN THE SAME ALGORITHMS
ON THE SAME DATA JUST WITHOUT
THOSE PRETRAINED EMBEDDINGS, SO
I THINK THAT THE LIBRARY HAS AN
AWFUL LOT TO ADD TO THE MACHINE
LEARNING REVOLUTION IF YOU WILL,
AND IT'S SAFETY AND I BUILDING
THAT WE ARE THE PEOPLE THAT WILL
MAKE THESE THINGS FUNCTIONAL IF
THEY'RE GOING TO BECOME THAT
WAY, THEY'RE GREAT PROMISE, AND
I'M LOOKING IF ORDER TO WORKING
WITH ALL OF YOU TO BETTER FUTURE
FOR HEALTH IN THE COUNTRY:
THANK YOU.
>>THANK YOU.
>>THANKS, PETER.
>>OMOLOLA?
>>HI, DIANE, I REALLY ENJOYED
YOUR PRESENTATION.
1 OF THE QUESTIONS YOU ASKED
WHAT POTENTIAL USES FOR
GENERATIVE AI, AND I WAS REALLY
THINKING MORE OF THE CONSUMER
HEALTH SPACE.
SO 1 OF THE THINGS THAT I LIKE
TO DO WITH CHAT GPT IS HAVE IT
EXPLAIN A CONCEPT AT DIFFERENT
GRADE LEVELS AND IT'S ACTUALLY
PRETTY DESSENT WITH THAT.
YOU CAN ASK IT TO EXPLAIN THE
CONCEPT OF THE THIRD GRADE LEVEL
AND 12th GRADE LEVEL AND
VERIFY ACCURACY, THERE STILL HAS
TO BE A HUMAN IN THE LOOP AS
EVERYBODY POINTED OUT BUT THAT
MIGHT BE 1 PLACE THAT--WHERE THE
NLM COULD LEVERAGE THAT BECAUSE
GETTING PEOPLE TO UNDERSTAND
THINGS WITH A LEVEL THAT'S
APPROPRIATE FOR THEM IS STILL A
CHALLENGE AS WE KNOW.
>>YEAH, THAT'S A GOOD POINT AND
I THINK I ALSO SHOULD MENTION
THAT IN MED LINE, THAT'S A GOOD
OPPORTUNITY FOR THAT BECAUSE I
DID TAKE IT AND USE SOME
INTERESTING STUFF AND BOTH
[INDISCERNIBLE] AND CHAT GPT, IF
YOU PUT THEM IN 2 DIFFERENT
THINGS, I THINK CHAT GPT FOR MY
OWN EXPERIENCE IS A BIT WARMER
INTERFACE FROM MY OWN
PERSPECTIVE, I THINK IT GIVES
YOU A MUCH NICER HALLMARKY TYPE
OF RESPONSES BUT THE OTHER THING
IS ESPECIALLY RELATED TO DEI
WHICH OF COURSE I FORGET IS MED
LINE PLUS, YOU'RE ABSOLUTELY
RIGHT.
MED LINE PLUS WE HAVE IT IN
ENGLISH AND ESP A NOL VERSION
BUT THEY ALSO CREATEDDA A NEW
PART OF IT CALLED EASY TO READ
AND IT'S REALLY HELPING TO
PROVIDE OUR USERS WITH MUCH MORE
PLAIN LANGUAGE CAPABILITIES AND
THINGS LIKE THAT, SO, WE'RE
LOOKING AT ITS USAGE BUT THAT'S
AN EXCELLENT RECOMMENDATION AND
I HOPE OUR STAFF AND PSD ARE
LISTENING TO THIS.
>>GREAT.
THANK YOU.
ANY OTHER QUESTIONS OR COMMENTS.
THAT WAS LOTS OF GREAT DIALOGUE
ON A TOPIC THAT'S COMING FAST
AND FURIOUS TO ALL OF US.
SO I THINK IF NO OTHER
DISCUSSION, WE NOW HAVE A COFFEE
BREAK WHICH WAS SUPPOSED TO BE
2:30-2:45.
DO YOU WANT TO GO STRAIGHT
THROUGH TO 2:45 OR DO YOU WANT
TO SHORTEN SINCE WE'RE BREAKING
EARLY.
>>I THINK IT WOULD BE PRUDENT
TO SHORTEN FOR QUYNH WAS IS HERE
FOR THE TALK, OUR 2:45 SPEAKER?
>>I'M LOOKING ACROSS THE GROUP,
SEEING IF SHE'S HERE YET.
DON'T SEE HER YET BUT SHE MAY BE
ON FOR--
>>LET'S GO AHEAD AND PLAN ON
RETURNING AT 2:40.
AND I'LL SEND HER A MESSAGE
RIGHT NOW IN CASE SHE'S
MONITORING HER E-MAIL THAT WE
WILL START A BIT EARLY.
>>GREAT.
SO EVERYONE RETURN AT 2:40 AND
WE WILL SEE YOU THEN.
ENJOY YOUR COFFEE BREAK.
SO WE WILL KICK THINGS OFF AGAIN
AND I AM DELIGHTED TO BE ABLE TO
INTRODUCE QUYNH NG UYEN, WHO IS
EPIDEMIOLOGY AND BIOSTATISTICS
AT SCHOOL OF PUBLIC HEALTH.
DR. NG UYEN IS FOCUSING ON
RESEARCH FACTORS AS THEY REACT
TO HEALTH, THE DOCTOR IS ALSO
WORKING WITH DIG DATA SOURCES
SUCH AS SOCIAL MEDIA AND GOOGLE
STREET VIEW IMAGES, SHE'S HERE
TO DISCUSS HER GRANT ENTITLED
380-DEGREE AUTOMATED
CHARACTERIZATION OFLET BUILT
ENVIRONMENT FOR NEIGHBORHOOD
EFFECTS RESEARCH.
THIS SOUNDS DELIGHTFUL FOR
QUYNH DO YOU WANT TO QUICK IT
OFF.
>>YES I AND WILL SHEAR MY
SLIDES RIGHT NOW.
>>CAN EVERYBODY SEE THE SLIDES
OKAY?
>>NOT YET BUT THEY SHOULD BE
COMING?
PUT THEM INTO PRESENTER MODE AND
YOU SHOULD BE ALL SET.
>>THANK YOU SO VERY MUCH.
I'M REALLY HUMBLED AND HONORED
TO PRESENT THE NLM FUNDED WORK
USING IMAGES, SO I WANT TO START
OFF WITH THE MOTIVATION FOR THIS
WORK.
WITH 2 STORIES, SO, 1 STORY, I
WAS WITH A COHORT OF CLINICAL
AND TRANSATIONAL SCHOLARS WE
WERE WORKING WITH THE UNIVERSITY
OF UTAH HEALTH SCIENCES AND SHE
HAD JUST FINISHED DESCRIBING SHE
WAS HAD JUST INSTALLED A GARDEN
AND VERY EXCITED SO HER PATIENTS
CAN RELAX DURING TREATMENTS AND
WALK AROUND AND THEN SHE ASKED
ME WHAT RESEARCH AND I WAS DOING
AND I SAID I WAS RESEARCHING
NEIGHBORHOOD CONDITIONS AND THEN
THERE WAS A PAUSE WHERE SHE'S
LIKE WHERE ARE YOU DOING THAT?
WHY ARE NEIGHBORHOOD CONDITIONS
IMPORTANT?
AND SO I THINK THERE IS
SOMETIMES A--KIND OF A
DISCONNECT WHERE THERE'S A--WE
DON'T MAKE DIRECT CONNECTIONS
FOR CERTAIN CONDITIONS WE WERE
EXPOSED TO AND HOW THAT CAN
IMPACT OUR HEALTH DEHAD A FEW,
MENTAL STATE OR OTHER HEALTH
OUTCOMES, INCLUDING THINGS LIKE
HOW THEY CAN CREATE GREEN SPACE,
ENCOURAGE ACTIVITY AND MENTAL
WELL BEING.
AND THE SECOND STORY IS I WAS
WORKING AS A POST DOC, LOOKING
AT THE MOVING INTO HOUSING
EXPERIMENT, IT WAS 1 OF THE FEW
RANDOMIZED CONTROL TRIALS THAT
GAVE SECTION 8 HOUSING VOUCHERS
TO VERY LOW INCOME FAMILIES TO
ENABLE MOVES AND SO WE WERE
LOOKING, IT WAS IN 5 CITIES
INVOLVING OVER 4000 FAMILIES AND
SO 1 OF OUR GOALS WAS TO ANALYZE
WHAT ARE SOME MEDIATING
MECHANISMS CONNECTING THE
RELOCATION.
SO WHAT ARE SOME FACTORS, BUT
WORKING ON THIS FOR 2 YEARS,
THEY'RE IN 5 CITIES, THERE WAS A
PATCH WORK OF DIFFERENT
INDICATORS AND NONE OF THAT WAS
CONSISTENT, THE ONLY CONSISTENT
INDICATORS WERE CENSUS DRIVED
AND THE GOAL OF THIS PROJECT WAS
TO TRY TO CONSTRUCT
GEOGRAPHICALLY DESPERSED SET OF
INDICATORS THAT ENABLE THE
[INDISCERNIBLE] ACROSS THE U.S.
SO WE'RE LUCKY TO HAVE SOME
MEDIA ATTENTION ON THIS WORK,
HIGHLIGHTING SOME OF THE
NEIGHBORING CONDITIONS AND HOW
THEY IMPACT BOTH PHYSICAL AND
MENTAL HEALTH.
SO FOR COULD GOLE SHEET IMAGES
THEY ARE TYPICALLY CAPTURED ON
CARS WITH SPECIAL CAMERAS,
OVERLAPPING IMAGES TO ENABLE 360
VIEW CHARACTERIZATION, THE
IMAGES ARE UPDATED AND THE
FREQUENCY IS DEPENDENT ON BOTH
POPULATION DENSITY SO HIGHER THE
POPULATION DENNITY, THE MORE
FREQUENTLY THE IMAGES ARE
UPDATED AND ALSO THE BETTER
CONDITIONS FOR THE MORE AN IMAGE
IS UPDATED SO THAT'S A CAVEAT.
GIVEN THE TIMING AND WE'RE
TRYING TO GO THROUGH VERY
QUICKLY THE SET OF STUDIES WE
IMPLEMENT OVER THE LAST 5 YEARS
TO KIND OF GIVE A SNAPSHOT OF
SOME OF OUR ACTIVITIES, AMONG
THE FIRST ACTIVITIES INCLUDE
USING RESOURCES THAT ARE OUT
THERE SO COMPUTER VISION API WAS
1 OF THE FITTER TOOLS THAT
WE--FIRST TOOLS THAT WE USED AND
WE ALSO LEVERAGE NIH'S CREDIT
PILOT, SO THIS PILOT ENABLED
VARGTS TO GET ACCESS TO CREDITS
THAT NEED COMPUTATIONS THAT ARE
OUTSIDE OF THE SCOPE OF NORMALLY
COMPETING HARDWARE.
SO WE USE THIS API TO ANALYZE
OVER 16 MILLION GOOGLE SHEET
VIEW IMAGES BUT WE QUICKLY FOUND
OUT THAT THE COMPUTER ITERATION
COULD DETECT THOUSANDS OF
DIFFERENT OBJECTS AND IT WASN'T
TRAINED TO DETECT ANY PARTICULAR
OBJECT, SPECIALLY FOR THE
ENVIRONMENT CONDITIONS THAT WE
WERE INTERESTED IN SO IT
STRUGGLED FOR SMALLER OBJECTS
AND WE FOUND OUT THAT ACCURACY
IS--WHEN WE LABELED DATA
OURSELVES TO DO THE ESTIMATION
OF ACCURACY, THE INDICATORS THAT
CORRECTLY ASK THEY WERE LARGED
SO CHARACTERIZATION OF THE
OVERALL AREA OR CHERKTIZATION OF
A HIGHWAY PRESENCE, REALLY LARGE
INDICATORS.
SO, WITH THAT, WE DID ANALYSIS
WHERE WE CHARACTERIZE MEDIATORS
OF [INDISCERNIBLE] SO HERE IS
THE INFORMATION THAT THIS CAME
FROM A RURAL AREA, WE CAN
SUMMARIZE THE IMAGES FOR THAT
YEAR TO CONSTRUCT A RULE OR
INDICATOR OR COMPARE IT WITH
OTHER INDICATORS WHETHER IT'S
POPULATION DENSITY OR USDA AREAS
AND VIEWS.
LOOKING HERE WE ALSO SEE THE
RULE AND AREAS TYPICALLY HAVE
MORE ADVERSE OUTCOMES, SO HIGHER
B. C. DIABETES BUSINESS PHYSICAL
DISTRESS, MENTAL DISTRESS AND
THEN THE FOOD AND 1 OF THE
PATHWAYS IS JUST LOWER ACCESS TO
HEALTH AND AMENITIES THE FURTHER
SPACE RESOURCES AND WE CAN SEE
THAT THE GOOGLE GPT DRIVE
MEASURES HAVE ASSOCIATIONS ARE A
LITTLE BIT STRONGER.
SO FOR INSTANCE, PEOPLE LIVING
THE THIRD QUAR TILE OF RURAL
AREA BASED UPON THE GOOGLE SHEET
HAVE REFERENCES THEY'RE 5%
HIGHER THAN PEOPLE LIVING IN THE
LOWEST QUAR TILE OF THAT EVENT.
IN PUBLISHING IT'S A LITTLE BIT
SMALLER AND THEN RURAL GOES
SMALLER BUT GENERALLY IN THE
SAME DIRECTION SO THEY'RE
COMPLIMENTARY EXCEPT THE GOOGLE
SHEET VIEW INDICATORS ARE TRYING
TO FOCUS ON THE BUILD
ENVIRONMENT RATHER THAN
POPULATION COUNT.
SO FROM THAT PROJECT WE REALIZED
WE HAVE TO BUILD OUR OWN MODEL
SAYS FOR THE SPECIFIC INDICATORS
WE WERE IN, SO THIS AN EXAMPLE
OF WHAT THE IMAGES LOOK LIKE.
ONE INDICATOR IS GREEN SPACE, SO
THIS IS LABELED AS BEING A VERY
GREEN STREET, THE PRESENCE OF A
CROSS WALK, NOT SINGLE FAMILY
HOME.
SO WHEN YOU LOOK THROUGH GOOGLE
SHEET IMAGES THERE'S TECHNICALLY
[INDISCERNIBLE] IMAGES BECOME
PURELY PRESENTIAL SO ALL SINGLE
FAMILY HOMES VERSUS AREAS WHERE
YOU HAVE A BUSINESS THERE OR AN
APARTMENT SO THAT WAS AN
INDICATOR OF LOWER DEVELOPMENT
OR RESIDENTIAL AREAS AND THEN WE
HAVE VISIBLE UTILITY WIRES WHICH
IS UNDERSTUDIED IN THE U.S., AND
THERE'S MORE SETTINGS WHERE THIS
CAN REPRESENT THE RISK, BUT I
THINK THE U.S. IS MORE
AESTHETTIC APPEAL AND HOW THAT
COULD BE A--BITS INDICATOR OF
THE DISORDER.
SO I WILL GO THROUGH SOME
NATIONAL ANALYSIS.
UPON OKAY, SO THESE ARE ACTUALLY
LIVE AND READILY AVAILABLE,
PEOPLE CAN HOP IN ON AND
DOWNLOAD AND VISUALIZE DATA SO
THIS WAS TO ENABLE OTHER NAMES
AND RESEARCHERS TO BE ABLE TO
VIEW DATA AND MERGE IT WITH YOUR
OWN DATA SET DHS IS A LONG
STANDING PART OF THIS PROJECT IS
TO MAKE EVERYTHING PUBLICLY
AVAILABLE.
SO SOME OF THE ANALYSIS
INVOLVING THE BUILT ENVIRONMENT
CHARACTER IEOF THETICS AND THE
HEALTH OUTCOMES THAT WE LOOK AT,
AND PARKS, FAMILY HOMES,
SIDEWALKS, CROSS WALKS AND THESE
ARE FAMILY [INDISCERNIBLE] ROADS
WHICH IS INDICATOR OF LOWER
URBAN DEVELOPMENT.
AND THEN WE ALSO HAVE THESE AND
[INDISCERNIBLE].
I THINK THERE IS A LITTLE--THE
KEYBOARD IS STICKING A LITTLE
BIT.
OKAY, WE FIND THAT SINGLE MAIN
ROADS, INDICATE URBOON
DEVELOPMENT IS ENACTED WITH
HIGHER CHRONIC CONDITIONS AND
WORSENED MENTAL HEALTH, SO CROSS
WALKS, YOU WANT, SIDEWALKS YOU
WANT CONNECTED WITH DECREASED
CHRONIC CONDITIONS AND MENTAL
HEALTHMENT SO I WILL NEXT GO
THROUGH A SERIES OF ANALYSIS
LOOKING AT INDIVIDUAL LEVEL
OUTCOMES SO THE PREVIOUS STUDIES
MORE LIKE ECOLOGICAL AND SIGNS,
WE WANT TOED EXAMINE WHETHER
THIS CAN ACTUALLY PREDICT AT THE
INDIVIDUAL LEVEL, PERSONS HEALTH
OUTCOMES.
SO WE UTILIZE THIS FIRST STUDY
IS FROM UTAH, SO UTAH HAS A
SPECIAL DATABASE, THE UTAH
PUBLISHED DATABASE, FOR THOSE
INTERESTEDENTIOUS SPECIALLY
FAMILY SITES AND ALSO STATEWIDE
PATIENT RECORDS.
SO THIS ANALYSIS ACTUALLY
INCORPORATES PATIENT RECORDS
FROM OVER 700,000 PATIENTS
ACROSS UTAH.
SO WE WILL GET CLEAN STREETS,
CROSS WALK, FAMILY HOME, WE FIND
THAT FOR INSTANCE GREEN STREETS
HAS ASSOCIATION OF 25% REDUCTION
IN OBESITY FOR PEOPLE LIVING IN
MOST GREEN ZIP CODES, THIS
CONTROLS FOR AGE, SEX, AND
EDUCATION AND SOCIAL DEMOGRAPHIC
AT A DIFFICULT LEVEL.
>>QUYEN, WE'RE HAVING SOME
TROUBLE HEARING YOU, THE LAST
DESCRIPTION OF THAT LAST WE
COULDN'T HEAR AT ALL.
IT SEEMS LIKE EVERY THIRD
SYLLABLE IS CUTTING OUT.
>>I WILL SEE IF I CAN INCREASE
VOLUME A LITTLE BIT.
>>SITTING IN CLOSER HAS MADE A
DIFFERENCE RIGHT THERE.
>>I THINK I'M TOO FAR AWAY FROM
THE MIC.
THANK YOU SO MUCH FOR LETTING ME
KNOW.
OKAY, SO FOR THE LAST SLIDE, SO
THIS ANALYSIS IS THE FIRST
INDIVIDUAL SET OF ANALYSIS THAT
I TALKED ABOUT YET AND THIS IS
SCRUOF THE LEVERAGING OVER
700,000 PATIENT RECORDS IN THE
STATE OF UTAH AND WE SEE THAT
THESE HAVE PERACCEPTINGS IN
OBESITY AND DIABETES,
CONTROLLING FOR SOCIAL AND
DENTALLOGRAPHICS, IT WILL BE
DIFFICULT TO TRY TO ISOLATE
POTENTIAL FAMILY ON PATIENT
HEALTH OUTCOMES.
OKAY, AND TO KIND OF COMPLEMENT
OUR UTAH ANALYSIS, WE ALSO
ANALYZED DATA FROM UCSF, SO THE
UNIVERSITY OF CALIFORNIA
SAN FRANCISCO HEALTH SYSTEM AND
THIS IS JUST KIND OF PROVIDING
COMPLEMENT AND SEE THE
ROBUSTNESS OF ASSOCIATIONS GIVEN
THAT CALIFORNIA IS A VERY
DIFFERENT PATIENT POPULATION
COMPARED TO UTAH.
THIS COVAGE IS OVER 200,000
PATIENT RECORDS FROM UCSF.
THIS A DISTRIBUTION OF THE BILL
PHARMA IBDICATORS AND IMAGES
FROM CALIFORNIA.
SO WE SEE THAT FOR INSTANCE
GREEN STREETS ASSOCIATED WITH
SECTIONS IN HYPERTENSION
DIABETES, THIS WIRE, THE
[INDISCERNIBLE] USED AS
INDICATORS EVER FISCAL DISORDER
AND THEY'RE CONNECT WIDE MORE
ADVERSE OUTCOMES.
SO THE MAGNITUDE OF OUTCOMES
NEAR GREEN STREETS IS ABOUT 92%,
FOR DELAPIDATED BUILDINGS IS 50%
FOR THESE OUTCOMES.
SO OVERALL, THE ADVANTAGES OF
USING GOGGLE SHEET VIEW AND
COMPUTER VISION IS 1 EFFICIENCY,
SO FROM IDEA TO IMPLEMENTATION
TO STUDY FINDINGS IS QUITE
FASTER, IF YOU LEVERAGE AN
EXISTING DATA COLLECTION LIKE
GOOGLE SHEET VIEW, BECAUSE THEY
ALREADY HAVE THE DATA AND THE
CARS.
RESEARCHER SAFETY, INITIALLY
NEIGHBORHOOD RESEARCH RELIED ON
NEIGHBORHOOD AUDIT SO IF YOU
WANT TO UNDERSTAND NEIGHBORHOOD
CONITION DIDS YOU WOULD SEND
STAFF THERE AND KIND OF
INVENTORY THE CHEARKTISTICS BUT
THIS KIND OF BROUGHT INTO
CONCERNS ABOUT RESEARCHER SAFETY
DEPENDING ON THE [INDISCERNIBLE]
THAT RESEARCHERS WERE POPPING
INTO, AND USING THE DAILY BASIS
THEA HAS LOWER COST
[INDISCERNIBLE] UNOBTRUSIVE
BECAUSE YOU KNOW YOU'RE NOT
INTERFERE NOTHING DAILY
RESIDENT'S LIVES.
SO FOR THE SAME AREA OR
DIFFERENT AREAS THAT THERE CAN
BE DIFFERENT DATA COLLECTION
TIME TOWARDS AND YOU KNOW
RELYING ON GOOGLE'S DATA
COLLECTION PROTOCOLS SO
DIFFERENT, I WOULD SAY THERE'S
THE AREAS ESPECIALLY SO THESE
RURAL AREAS OF LIMITATION,
ESPECIALLY IF YOU'RE INTERESTED
IN [INDISCERNIBLE] AREAS, ALSO
THE IMAGES CAN HAVE OBJECTIVES
OBJECTIVE THEIR VIEWS AND
STREETS ARE NOT DRIVABLE BY
GOOGLE CARS WON'T HAVE DATA
COLLECTIONS.
SO GOOGLE SHEET VIEW DOES ASHES
COUNT FOR STREET LEVEL VIEWS OF
THE BUILT ENVIRONMENT.
EACH IMAGE COMES WITH A
COORDINATES SO THAT ALLOWS FOR
FLEXIBLE NEIGHBORHOOD BOUNDARIES
SO IF YOU HAD SPECIAL BOUNDARIES
FROM AUSTIN OR NEW YORK, YOU
COULD VIEW THOSE BOUNDARIES, AND
THEN IT ALLOWS YOU TO PERFORM
ANALYSIS BOTH ECOLOGICAL AND
INDIVIDUAL LEVELS DEPENDING ON
THE LEVEL OF GEOGRAPHIC DETAILS
HAVE YOU IN YOUR DATA.
I WOULD SAY FUTURE STUDIES DO
NEED TO HAVE TIGHTER CONTROL FOR
COMPOUNDING AND [INDISCERNIBLE]
INCLUDE SIBLING STUDIES SO IF
YOU HAVE SIBLINGS THAT LIVE IN
DIFFERENT LOCATIONS CAN YOU
CONTROL FOR SOME OF THE FAMILY
BACKGROUND CHARACTERISTICS AND
THEN IT ALSO LONGITUDINAL TODAYS
WITH WHERE YOU EXAMINE CHANGES
IN THE CONDITIONS AND HOW THEY
CAN POTENTIALLY DO CHANGES IN
HEALTH OUTCOME.
SO I WANT--A LITTLE DIVERGENT
INTO THE NEXT PROJECT, AN
EXTENSION OF THIS PROJECT.
[INDISCERNIBLE] WHICH IS
MOTIVATED BY THE FACT THAT
VEHICLE RELATED KRSHS ARE A TOP
LEADING CAUSE OF DEATH ACROSS
THE GLOBE AND LEADING CAUSE OF
DEATH AMONG PEOPLE 5-29 YEARS OF
AGE AND THERE ARE STUDIES THAT
INDICATE THAT ROAD CONDITIONS,
NEIGHBORHOOD ENVIRONMENTS CAN
IMPACT THE LIKELIHOOD OF A CRASH
AND THE LIKELIHOOD OF FATALITY
AND WE PLAN TO USE COMPUTER
VISION AND GOOGLE SHEET VIEWS TO
TRY TO LEND DATA AND IMPERICAL
STUDIES TO THIS LINE OF RESEARCH
AND PRODUCE ALSO GEOPORTAL TO
VISUALIZE ROAD KRSH RISK, KIND
OF LIKE THE WAY TRAFFIC PATTERNS
ARE DISPLAYED.
WOO DID DO PRELIMINARY WORK
INVOLVING D. C. DATA SO IF
YOU'RE INTERESTED IN THE LOCAL
FINDINGS, SED WALKS,
[INDISCERNIBLE] THOSE ASSOCIATE
WITH DECREASES IN TOTAL CRASHES
AS MOST [INDISCERNIBLE] RELATED,
CONSTRUCTION IS ASSOCIATE WIDE
ELEVATION OF THE CRASHES, STREET
GREENS IS UNDERSTUDIED BY IT'S 1
OF THOSE FEATURES WHERE IT
CREATES A NATURAL NARROWING OF
THE STREET AND THEN TENDS TO
[INDISCERNIBLE] CARS AND THAT'S
1 REASON WHY IT'S RELATED TO
PURE CARBS.
WE ALSO HAVE PREMIER FINDINGS IN
BOGOTA COLUMBIA, AND WE ARE
TRAINING WITH THOSE IMAGES THERE
APPROXIMATE WE ARE FINDING SPEED
BUMPS, SCHOOL ZONES, SED WALKS
OR TREES ARE MOASH CONTRIBUTING
TO COLLISIONS IN THOSE LOCATIONS
SO WE'RE STARTING TO BUILD A
REPOSITORY SO WE HAVE ANALYZED
OVER 100 MILLION ROADS COVERING
ALL 122 COUNTRIES THAT HAVE
GOOGLE SHEET VIEW IMAGES, WE
DEVELOP A SCHEME WHERE WE
COLLECT COORDINATES EVERY
HUNDRED METERS DOWN A ROAD SO WE
HAVE ABOUT 433 MILLION SEARCH
POINTS WHICH WILL SHOW IMAGES
AND WE ARE STARTING TO AMASS
POLLUTION DATA FROM COUNTRIES
ACROSS THE GLOBE.
THIRTY-FIVE SO FAR INCLUDING THE
UNITED STATES, UNITED KINGDOM,
AUSTRALIA AND OTHER COUNTRIES SO
THIS IS ANAN GOING EFFORT AND AN
EXTENSION OF OUR GOOGLE STREET
VIEW WORK AND THAT'S ALL MY
SLIDES.
I AM HAPPY TO TAKE QUESTIONS.
>>GREAT.
THANK YOU.
THAT WAS INTERESTING, FIRST I
WILL TURN TO OUR ASSIGNED
DISCUSSANTS.
JIM AND JOE, EITHER 1 OF CAN YOU
KICK IT OFF.
I THINK JOE HAS LANDED IN AND
MAYBE JOINING US SOON.
>>YES, JOE HAS LANDED.
APPROXIMATE?
, BUT WE WILL MAYBE START WITH
JIM.
>>OKAY, WELL, THANK YOU, THAT'S
A WONDERFUL PRESENTATION, GREAT
USE OF THESE DATA AND I'VE KIND
OF BEEN AWARE OF THE WORK YOU
ARE DOING AND THOUGHT, YOU KNOW
WHAT A GREAT WAY TO COLLECT
SOCIAL DETERMINANTS, YOU KNOW
ATA A BROAD SCALE, WITHOUT YOU
KNOW PUTTING--WITHOUT THE
EXPENSE AND THE RISK OF GOING
OUT AND COLLECTING THE DATA.
ONE TECHNOLOGY TRANSFER I WAS
WONDERING, SO GOOGLE UPDATES
THEIR IMAGES, AND THEY'VE BEEN
DOING IT FOR A WHILE AND I'M
WONDERING IF THERE'S' WAY TO GET
OLDER IMAGES THAT MIGHT SHOW A
DIFFERENT SOCIAL DETERMINANT IN
A PARTICULAR AREA THAT COULD
THEN BE CORRELATED WITH CHANGES
IN POPULATION DATA.
IT WOULD HAVE TO BE OVER SOME
SIGNIFICANT PERIOD OF TIME TO
A-BE ENOUGH TIME TO CHANGE AND
B-BE ENOUGH TIME TO SHOW UP IN
THE DATABASE.
BUT I WONDER IF YOU THOUGHT
ABOUT THAT AT ALL?
>>YES, WE ACTUALLY JUST
STARTED, I WOULD SAY A FEW
MONTHS AGO.
SO WE STARTED WITH D. C. EMPLOY
SO GOOGLE NOW ENABLES HISTORICAL
VIEWS OF THEIR DATA.
SO WE GOT GOOGLE IMAGES FIRST
AGAIN 2007 SO NOW WE COLLECTED
ALL AVAILABLE IMAGES FOR
WASHINGTON D. C. FROM
2007-CURRENT.
AND 1 OF THE ANALYSIS IS THE
PLAN IS LOOKING AT GENETICALLY
RIIFICATION, D. C. AND THINGS
RACIAL-ETHNIC CORRELATIONS AND
CHAIMPLES WE HAVE COLLECTED THE
DAILY BASIS THEA BUT NOT STARTED
ANALYSIS BUT IT'S AVAILABLE NOW
IF THAT CAPACITY.
>>GREAT.
GREAT.
>>SO, I AM NOT SURE HOW I LEAD
A DISCUSSION OF OTHER PEOPLE WHO
WANT TO ASKED QUESTIONS UNLESS
THEY WANT TO BLURT IT OUT OR PUT
UP THEIR HAND OR SOMETHING?
QUESTIONS?
>>JOE IS NOT YET ON AND I DON'T
THINK HEARD THE TALK SO HE MIGHT
NOT BE ABLE TO CONTRIBUTE EITHER
BUT PATTY DO YOU WANT TO MAKE A
COMMENT?
>>THANKS VERY MUCH.
I JUST--I REALLY DO LOVE THIS
WORK.
I WANTED TO TALK A LITTLE BIT
ABOUT HAVE YOU DONE ANY
EXPLORATION OF GETTING OTHER
ENVIRONMENTAL SENSOR DATA IN
LIKE AIR QUALITY OR TEMPERATURES
ON THE DAYS THAT THEY
MATERIALS--THE SAMPLING WAS
DONE, FIRST QUESTION.
SECOND QUESTION IS, JERRY'S
GOING TO LOVE THIS, HOW ARE YOU
GOING TO COMMRI WITH THE NIH'S
DATA MANAGEMENT AND SHARING
POLICY WITH THE NEW DATA.
SO YOU CAN TAKE THEM SEPARATELY.
>>YES, VERY GOOD QUESTIONS.
SO TODAY, I WORKED WITH A
COLLABORATOR MICHAEL
[INDISCERNIBLE] FROM JOHNS
HOPKINS AND INCIDENTALLY TODAY
HE WAS NOTIFIED THAT HE WILL BE
REWARDED SEED FUND FREE RADICALS
GENERATED JOHNS HOPKINS TO TRY
TO RENT A VEHICLE WITH THE
SPECIAL CAMERA AND DRIVE AROUND
BALTIMORE.
AND ON THE CAMERA THERE'S GOING
TO BE ALSO COLLECTION OF AIR
POLLUTION, SO A CONCURRENT
COLLECTION OF IMAGES AS WELL AS
AIR POLLUTION TO TRY TO MARRIRY
THE 2 IN AND MORE OF MAYBOR HOOD
CONDITIONS.
>>YES, AND THEN THE SECOND 1,
SO DATA SHARING, SO RYE NOW,
[INDISCERNIBLE] BUT WE ONLY MAKE
AVAILABLE SUMMARIES OF DATA, SO
SUMMARIES AT THE CENSUS, GOOGLE
LEVEL, COUNTY AND STATE.
WE DON'T REALLY SHARE--THAT'S
PROBABLY AGAINST GOOGLE'S
COPYRIGHT TO SHARE INDIVIDUAL
IMAGES BUT WE DO SHARE ANALYZED
SUMMARIES OF OUR OWN
CHARACTERIZATION OF LIKE, FOR
INSTANCE THE PERCENT OF CROSS
WALKS AND DIFFICULT PERCENT OF
STREET LINES IN THE DRIVE, AND
THEN [INDISCERNIBLE].
>>YEAH.
>>ANDY?
>>SO THIS IS EXCITING WORK.
IT'S SOMETHING I HAD NOT BEEN
FAMILIAR WITH AND QUITE A NEAT
WAY TO MAKE USE OF THAT MASSIVE
AMOUNT OF DATA.
MOSTLY YOU'RE TALKING ABOUT
PROXIES FOR SOCIOECONOMIC STATUS
AND I'M WONDERING IF YOU'VE DONE
THE SORT OF OBVIOUS COMPARISON
OF WHERE YOU ACTUALLY HAVE A
GREAT DEAL OF INDIVIDUAL, YOU
KNOW FINANCIAL DATA THAT'S BEEN
DONE WITH THESE HEALTH RISKS AS
WELL, AND DOVETAIL THEM AND ASK
WHAT IS THIS SORT OF RELATIVE
PREDICTIVE ABILITY OF GOOGLE
STREET BIEW VERSUS DIRECT
INDIVIDUAL FINANCIAL DATA.
OH THAT'S A GOOD POINT, THAT'S
SOMETHING THAT WE SHOULD DO BUT
SOMETHING WE EVAPORATE DONE MUCH
OF.
I THINK 1 OF THE--MY GUT
INSTINCT IS THAT ACTUALLY THE
SOCIAL DEMOGRAPHICS AND DOSES
ADVANTAGE MEASURES BE MORE
PREDICTIVE.
IT'S BECAUSE THE SOCIAL ECONOMIC
RESOURCES ARE KIND OF
FUNDAMENTAL CAUSES OF HEALTH.
THEY ENABLE THE ACCESS TO
RESOURCES IN THEIR FLEXIBLE AND
SO WHENEVER YOU HAVE A NEW TOOL,
AVAILABLE, GENERALLY THEN HAVE
YOU THE MORE ADVANTAGE THAT GET
THE TOOL FIRST AND THEN, I WOULD
SAY THAT THEY'RE PROBABLY GOING
TO BE STILL MORE POWERFUL
FUNDAMENTALLY, BUT BUILD ON THE
CHARACTERISTICS SUCH AS THE
PRESENCE OF SED WALKS AND
CONTRIBUTE THE STREET VIEW,
POTENTIALLY TO THE EXAM BUT IT
ALSO MIGHT BE CORRELATED BECAUSE
HIGHER SES NEIGHBORHOODS HAVE
MORE TO DEMONSTRATE IN TERMS OF
THE POLITICAL WILL AND POWER OF
THE RESIDENTS TO HAVE GREEN
STREETS AND MORE AMENITY AND
MORE LANDSCAPING.
>>FOR THAT SMALLER DATA SET
WHERE YOU HAVE BOTH KINDS OF
DATA IT WILL BE QUITE
INTERESTING TO SEE WHAT DOES THE
BUILT ENVIRONMENT DATA ADD TO
THE FINANCIAL DATA, THAT SORT OF
THING.
MANY OF THESE SORTS OF MEASURES
IN THE UK BIOBANK DATA WHICH
EVERYBODY'S BUILDING AMAZING
MODELS ON THIS, TRULY IMPRESSIVE
HOW PREDICTIVE IT IS IN MANY OF
THESE COMPLEX HEALTH DISORDERS.
BUT I ESPECIALLY LIKE YOUR
COMMENT AT THE END.
I'M LOOKING AT SIBLINGS AND
WHERE YOU ACTUALLY HAVE
RELATEDNESS DATA, YOU CAN GET A
GENO TYPE BY ENVIRONMENTAL
INTERACTION, IT'S KIND OF
EXCITING OPPORTUNITY.
>>CURIOUS IF YOU HAVE--IF
YOU'VE THOUGHT ABOUT OR PLAN TO
DO ANY OF THE SIMILAR ANALYSIS
IN NONU.S. LOCATIONS?
BECAUSE I SEE MOST OF THE
FACTORS YOU'RE LOOKING AT WOULD
BE SIMILAR BUT YOU WOULD IMAGINE
SOME KEY DIFFERENCES.
I WAS JUST THINKING ABOUT A
SINGLE LANE VERSUS MULTILANE AND
IN EUROPEAN CITIES, THERE'S TINY
STREETS THAT MAY NOT CORRELATE
WITH YOU KNOW CERTAIN
SOCIOECONOMIC FACTORS, I'M JUST
CURIOUS WHETHER DIFFERENCES IN
COUNTRIES AND REGIONS COULD
CONTRIBUTE TO DIFFERENT WAYS TO
ANALYZE THE DATA OR RETURN
OUTCOMES OF THE DATA?
>>YEAH, I THINK WHEN WE MOVE TO
COLLISION VISION, IT IS A SCARY
PROJECT TO THINK ABOUT GIVEN THE
HETEROGENEITY AND THE BUILT
CHARACTERISTICS LOOK AND WHEN WE
FIRST THINK ABOUT ON THE SCALE
HOW TO CHARACTERIZE, THE
ENVIRONMENTS, I THINK--THINKING
THINGS THAT ARE MORE UNIVERSAL
IN LOOK WILL BE OUR BEST SHORT,
SO THINGS LIKE POTENTIALLY
SIDEWALKS, RIGHT, TREES, STREET
LIGHTS, TRAFFIC LIGHTS WILL BE A
BIT EASIER, WE START TO LACK AT
SPEED BUMPS, BUT SPEED BUMPS
LOOK QUITE DIFFERENT IN
DIFFERENT COUNTRIES SO THAT
PRESENTS LIKE A REALLY DIFFICULT
PROBLEM FOR COMPUTER VISION.
FOR INSTANCE, LATER ON IN THE
PROJECTS RESEARCH, AND LOOKING
AT INDICATORS OF PHYSICAL
DISORDER WHICH ARE VERY
DIFFICULT, SO DILL APPLICATIONS
DATED BUILDING TOOK A YEAR,
BECAUSE AT FIRST, WE WERE
MANUELLY ANNOTATING DATA BUT
EVEN AMONG STAFF MEMBERS, PEOPLE
DEPENDING ON THEIR OPINION OF
WHAT IS DELAPIDATED AND WHAT IS
NOT AND WHEN YOU FEED THE
HETEROGENEITY INTO THE MODEL, WE
CONFUSE THE MODEL BECAUSE
THERE'S ALREADY HETEROGENEITY IN
THE [INDISCERNIBLE].
AND WE LEVERAGE FOR DAT THAT IS
MARKED FOR DEMOLITION AND THAT
PROVIDED TRAINING DATA AND
ANYTIME YOU GET
HETEROGENEOUSER'S GENERATED
AITY, AND YOU GET THINGS MORE
DIFFICULT, SO LITTER WAS
DIFFICULT AND WE CAN ABANDON
THAT AS AN INDICATOR ALTHOUGH WE
WERE INTERESTED IN THAT 1 AND
GRAFFITI.
GRAFFITI IS SOMETHING THAT
PEOPLE ASK ABOUT OFTEN BUT IN
THE WIDE SCREAM OF THE IMAGE
COLLECTION, IT'S A REALLY SMALL
PERCENTAGE OF IMAGES AND BECAUSE
OF THE RARITY OF THAT FEATURE,
IT WAS VERY DIFFICULT AND ALSO
TO DISTINGUISH IT AS ART WORK.
SO WHEN YOU COME INTO THE SPACE
OF COMPUTER VISION, START TO
SEE, YOU BALANCE IT BETWEEN WHAT
IS FEASIBLE, BUT THEN YOU STILL
GO AFTER WHAT IS TRULY, WHAT IS
IMPORTANT BECAUSE EVEN THOUGH IT
TOOK A YEAR FOR DILL
APPLICATIONSIDATED BUILDINGINGS
AND ALSO CHAIN LINK FENCE, THAT
WAS ALSO A DIFFICULT MEASURE BUT
WE'RE USING IT TO TRY TO CAPTURE
VACANT LOTS WHICH HASN'T BEEN
MERGING AS A LINE OF RESEARCH
WHERE PEOPLE ARE INTERESTED IN
THE CONNECTION TO HAVE CANT LOTS
FOR CRIMINAL ACTIVITY OR ALSO
GREEN SPACES.
ONE I DIDN'T CIRCLE BACK TO IS
USING THE UTAH PUBLISHING
DATABASE TO DO THE SIBLING
STUDY, SO THERE ARE FAMILY
IDs, SO I KNOW ACTUALLY WHEN A
PERSON IS RELATED AND I CAN USE
THAT TO EXAMINE WHEN THEY LIVE
IN DIFFERENT LOCATIONS.
WE DID THAT FOR A TWITTER
PROJECT, I ALSO WAS ABLE TO USE
TWITTER DATA TO CHARACTERIZE
SOCIAL ENVIRONMENTS AND WE DO
STUDIES, THE TWITTER PROJECT
CONTROLLING FOR SIBLINGS
CHARACTERISTICS AND ATTENUATE
THE RESULTS FOR SOCIAL
ENVIRONMENTS BUT IT WAS STILL
THERE, BUT I HAVEN'T DONE
SIMILAR STUDY FOR GOOGLE SHEET
REVIEW BUT IT IS POSSIBLE.
THAT'S GOING TO BE A NEXT VIEW
WITH THAT DATA.
>>INTERESTING, GREAT.
>>ANY OTHER QUESTIONS OR
COMMENTS FOR QUYNH?
ALL RIGHT, WELL THANKS SO MUCH
FOR JOINING US AND FINDING THAT
INTERESTING WORK.
ALL RIGHT, WE WILL MOVE ON TO.
>>THANK YOU.
>>THANK YOU SO MUCH.
>>ALL RIGHT, TAKE CARE.
ALL RIGHT WE'LL MOVE ON TO OUR
NEXT TOPIC WHICH IS PERSONAL
HEALTH INFORMATICS CONCEPT
CLEARANCE DISCUSSION THAT WILL
BE LED BY ALLYSON DENNIS.
>>GOOD AFTERNOON.
I AM ALLYSON DENNIS, I'M AN
EXTRAMURAL OFFICER WITH THE
EXTRAMURAL PROGRAM, I JOINED MLM
FOR A YEAR AGO DOES I ENJOYED
GROUPS IN MY HEALTH INFORMATICS
AND HEALTH INFORMATICS AND
INFORMATICS KNOWLEDGE.
2017,-2027 NLM AND OUTLINED AND
ENVISION, AND PERSONAL HEALTH
DATA AND COLLECTION BECOMES
FOUNDATIONAL AND BECOMES A
FOUNDATION OF SELF-KNOWLEDGE AND
PERSONAL HEALTH MANAGEMENT AND
IN RESPONSE THE EXTRAMURAL
PROGRAM HAS INVESTED IN PROJECTS
FOCUSED ON PERSONAL HEALTH
INFORMATICS RESEARCH, THESE HAVE
LARGELY BEEN SOLICITED TO
DETERMINE RO-1 NOTICE OF FUNDING
THAT'S TITLED DATA SCIENCE
RESEARCH, PERSONAL HEALTH
LIBRARIES FOR CONSUMERS IN
PATIENTS.
THIS OPPORTUNITY WAS SEEKING
NOVEL AND DATA SCIENCE
APPROACHES THAT WILL HELP
INDIVIDUALS GATHER, MANAGE AND
USE DATA INFORMATION ABOUT THEIR
PERSONAL HEALTH.
IT WAS OPEN FOR ABOUT 4 YEARS,
AND IT DID CONCLUDE IN JULY OF
2021.
OVER THOSE 4 YEARS WE FUNDED
ABOUT 12 PROJECTS THROUGH THIS
OPPORTUNITY AND IT OUTLINED SOME
OF THE USE CASES AND PRODUCTS
THAT WERE BUILT THROUGH THIS
PROGRAM.
SEVERAL OF THESE PROJECTS
FOCUSED ON PROVIDING SPECIFIC
USE CASES, SOME OF THESE
INCLUDED FORMALLY MEETING THE
NEEDS OF POPULATIONS INCLUDING
FORMALLY INCARCERATED
INDIVIDUALS YOUTH EMANCIPATED
FROM FOSTER CARE, PATIENTS WITH
EPILEPSY, PATIENTS WITH
ENDOMETRIOSIS, AND TO ADDRESS
THE NEED FOR THESE INDIVIDUALS,
RESEARCHERS DEVELOP PRODUCTS
THAT INCLUDE PROTOTYPIC
LIBRARIES IN THE FORM OF
WEBSITES, MOBILE APPS AND ONLINE
PORTALS, I ALSO OUTLINED A FEW
OTHER OF THE SPECIFIC TOOLS THAT
WERE GEPPED AS PART OF THIS
PROGRAM BUT I THINK I'M GIVING
YOU AN IDEA OF THE RANGE OF USE
CASES AND TOOLS THAT WERE
DEVELOPED AS PART OF THE
SOLICITATION.
TO LEARN MORE ABOUT THESE
PROJECTS AND THE FIELD MORE
BROADLY IN PERSONAL HEALTH
INFORMATICS RESEARCH IN FEBRUARY
OF 2023 E. P. CONVENED A
WORKSHOP IN MEETING THE NEEDS OF
DIVERSE POPULATIONS THROUGH
TAILORED PERSONAL HEALTH
INFORMATICS, THIS WORKSHOP WAS
ATTENDED BY MANY PIs THAT WERE
FUNDED BY THE SOLICITATION, I
JUST DESCRIBED.
WE ALSO MADE EFFORTS TO INVITE
OTHER INVESTIGATORS FUNDED BY
OTHER ICs ACROSS NIH AND ALSO
OTHER LEADERS IN THE FIELD.
THE PANEL PRESENTATIONS AND
BREAK OUT DISCUSSIONS LEFT US
WITH SEVERAL KEY TAKE AWAYS THAT
I WOULD LIKE TO SHARE WITH YOU
NOW.
WE HEARD FROM THE PIs WHO ARE
ENGAGING WITH THE COMMUNITIES
THEY'RE DEVELOPING TOOLS FOR AND
IN PARTNERSHIP WITH THAT A
MIXTURE OF MULTIPLE METHODS
ALONG THE COLLABORATIVE DESIGN
SPECTRUM BE IT USABILITY TESTING
OR CO-DESIGN, USING A COMBIN AGZ
OF THESE METHODS REALLY IS THE
MOST USEFUL WAY TO INSURE
MEANINGFUL ENGAGEMENT WITH THE
POPULATIONS, YOU ARE TARGETING.
PARTICIPANTS FELT THAT
PARTNERSHIPS BOTH WITH COMMUNITY
BASED ORGANIZATIONS AND PRIVATE
SECTOR COLLABORATORS SHOULD BE
CONSIDERED AS GOOD WAYS TO
FACILITATE BOTH USER ADOPTION
AND LONG-TERM ONGOING
MAINTENANCE OF TOOLS AND THE
RESOURCES THAT WERE BEING
DEVELOPED.
DEVELOPERS ALSO EMPHASIZED HOW
IMPORTANT IT IS TO CONSIDER
PERFORMANCE AND SCALABILITY OF
THE OFFSET OF ANY PROJECT YOU
ARE PUTTING TOGETHER TO MAKE
SURE THOSE PERSONAL HEALTH
INFORMATICS RESOURCES CAN BE
SUSTAINED AND SCALED LONG-TERM.
AND THEY ALSO ENVISION THAT
TAKING A MORE MODULAR APPROACH
TO PERSONAL HEALTH INFORMATICS
IN WHICH COMPONENTS CAN BE
REUSED AND THEN TAILORED TO MEET
SPECIFIC NEEDS, WE ALSO INSURING
SURING
SOCIAL AND TECHNICAL
CAPABILITIES AND IT WASES IN
WITH TOOLS, BY,A LOWING THE
TOOLS TO BE USEFUL TO A BROADER
RANGE OF RESEARCHERS AND
ALLOWING THOSE COMPONENTS TO BE
REPURPOSED MORE BROADLY.
LOOKING ACROSS THE FIELD OF
PERSONAL HEALTH INFORMATICS WE
SEE SEVERAL KEY ADVANCES WE
THINK ARE RIPE FOR SCIENTIFIC
ADVANCEMENT.
THESE INCLUDE PATIENT-GENERATED
HEALTH DATA, WEARABLE AND
ENVIRONMENTAL SENSORS, MENTIONED
VERY RECENTLY, SOCIAL
DETERMINANTS OF HELGTD, WE'VE
ALSO SEEN TREMENDOUS IMPROVEMENT
IN EHR INTEROPERABILITY, ALBEIT
THERE'S PROGRESS THAT NEEDS TO
BE MADE IN THIS AREA, AND WE'VE
ALSO SEEN THE REAL PROMISE OF
USING DIG THAL SUPPORT NETWORKS
AND DIGITAL HEALTH INTERVENTIONS
IN COMBINATION WITH HEALTH
INFORMATION TECHNOLOGY TO REAL
LE MAKE MEANINGFUL CHANGE FOR
INDIVIDUALS.
THROUGHOUT THIS MEETING WE'VE
HEARD ABOUT THE GROWING
CAPABILITIES OF MACHINE LEARNING
AND ARTIFICIAL INTELLIGENCE, BUT
WE ALSO FEEL THAT THERE IS A
TRUE POTENTIAL TO USE THESE
TOOLS FOR MAKING PERSONALIZED
RISK ASSESSMENTS, AND THE POWER
OF THESE TOOLS TO USE PERSONAL
HEALTH DATA TO REALLY MAKE
PERSONALIZED RECOMMENDATIONS.
IN THIS SPACE, WE STILL SEE MANY
CHALLENGES, PERSONAL HEALTH DATA
CAN CO AND OFTEN COLLECTED AND
STORED IN DESPERATE SYSTEMS THAT
MAY NOT BE COMPATIBLE OR ISHT
OPERABLE, WE KNOW IN THIS SPACE
THAT IT IS OF THE UTMOST
IMPORTANCE THAT INTEREST
SOFTWARE DEVELOPED CAN HAVE SAFE
GUARDS IN PLACE TO PROTECT
INDIVIDUAL PRIMATES VASE EXPE
CONFIDENTIALITY AND WHEN YOU'RE
COMBINING MACHINE LEARNING AI,
IN THIS MEDICAL SPACE, IT IS SO
IMPORTANT THAT THE TOOLS BE
TRANSPARENT, RELIABLE, ETHICAL,
AND EFFECTIVE.
SO GIVEN THAT ASSESSMENT OF THE
CURRENT STATE OF THE FIELD AND
THE CONVERSATIONS WITH EXPERTS,
WE HAVE MADE EFFORTS TO DESIGN A
PROGRAM THAT HAS SEVERAL KEY AND
DEVELOPMENT OF NOVEL INFORMATICS
AND DATA SCIENCE APPROACHES THAT
CAN HELP INDIVIDUALS IMPROVE AND
UNDERSTAND OVERALL HEALTH
THROUGH ACTIONABLE INSIGHTS AND
WHEN I SAY ACTIONABLE INSIGHTS
I'M DESCRIBING PREDICTIONS,
ANALYSIS, OR OUTPUTS THAT CAN
HELP INDIVIDUALS GIVE THEM THE
ABILITY TO ACT ON OR RESPOND TO
TRENDS AND FEATURES OF THEIR
PERSONAL DATA OR INFORMATION AND
MAKING SURE THIS IS DONE IN A
WAY THAT CAN EMPOWER THEM TO
IMPROVE THEIR OWN HEALTH SO WITH
THAT IN MIND, WE ARE SEEKING TO
FURTHER THE SCIENCE OF PROVIDING
MEANINGFUL AND ACTIONABLE
INSIGHTS INTO INDIVIDUALS,
THROUGH INNOVATIVE PERSONAL
HEALTH DATA COLLECTION,
INTEGRATION, AND PERSONALIZED
RISK ASSESSMENTS AND
INTERPRETATION.
WE WANT TO ADVANCE THE
UNDERSTANDING OF HOW INFORMATICS
TOOLS CAN BEST PRESENT THE
RESULTS INTERPRETATION AND
IMITATIONS OF PERSONAL
ASSESSMENT FOR THE BENEFIT OF
INDIVIDUALS, AND WE WILL BE SURE
TO EMPHASIZE THE IMPORTANCE
COMMUNITY ENGAGEMENT AND HEALTH
INFORMATICS TOOLS DESEENED AND
HOW THEY CAN BE REUSED AND
SCALED.
TO ACHIEVE THE OBJECTIVES, WE
WILL CALL FOR RESEARCH THAT
PROPOSES TO DEVELOP NOVEL
INFORMATICS AND DATA SCIENCE
APPROACHES TO PROVIDE ACTIONABLE
INSIGHTS TO INDIVIDUALS FROM
PERSONAL HEALTH DATA, WE ARE
PROPOSING TO DO THIS THROUGH THE
RO-1 MECHANISM.
WE WOULD LIMIT THE BUDGET TO
$250,000, THE DIRECT COSTERS PER
YEAR AND THESE PROJECTS SHOULD
BE MAXIMUM OF 4 YEARS LONG.
WE PLAN TO FOLLOW THE
APPLICATION DUE DATES THAT ARE
ALIGNED WITH THE NIH 3 TIMES A
YEAR STANDARD RECEIPT DATES AND
GIVEN THE INTERSECTION OF THIS
TOPIC, WE THINK THAT IT IS GOING
TO BE MOST APPROPRIATE FOR THEM,
THE APPLICATIONS RECEIVED UNDER
THIS TO BE REVIEWED BY THE
BIOMEDICAL INFORMATICS LIBRARY
AND DATA SCIENCES REVIEW
COMMITTEE WHICH WE CALL THE BLR.
IF THE CONCEPT IS APPROVED WE
ANTICIPATE WE WOULD BE ABLE TO
PUBLISH A CALL FOR FUNDING IN
ABOUT JULY OF 2023, AND GIIVE
THE VOLUME OF APPLICATIONS WE'VE
RECEIVED IN THE PAST ON THIS
TOPIC, WE ANTICIPATE THAT WE
COULD MAKE 3-4 AWARDS EACH YEAR.
TO FURTHER DRILL DOWN AND TRY TO
CHARACTERIZE WHAT WE ARE--THE
TYPE OF RESEARCH WE'RE LOOKING
TO SEE THROUGH THIS PROGRAM,
WE'VE ENVISIONED SEVERAL
RESEARCH QUESTIONS THAT WOULD BE
OF INTEREST, WE'RE VERY
INTERESTED IN HOW AI IS MACHINE
LEARNING TECHNIQUES EXTRACT AND
INTERPRET PATTERNS FROM
INDIVIDUAL HEALTH DATA AND
PROVIDE MEANINGFUL AND ACCURATE
INSIGHTS.
THIS HAS BEEN DISCUSSED TODAY
BUT HOW DO YOU BEST COMMUNICATE
THOSE INSIGHTS WITH INDIVIDUALS
TO HELP IMPROVE THEIR HEALTH
OUTCOMES.
WE'RE INTERESTED IN HOW TO USE
DATA SCIENCE TO DEVELOP
PERSONALIZED INFORMATICS BASED
INTERVENTIONS FOR PATIENTS,
BASED ON PERSONAL HEALTH DATA
AND UNDERSTANDING HOW TO SCALE
THESE TOOLS AND MAKE SURE THAT
THEY'RE EFFECTIVE WHEN BEING
APPLIED AND USED BY DIFFERENT
POPULATIONS AND HOW CAN YOU
ACCOUNT FOR BIAS WHEN USING
THESE TOOLS IN WAYS OTHER THAN
WHAT THEY WERE DEVELOPED FOR.
WE'RE INTERESTED IN HOW TO
INTEGRATE THIS DATA.
WE KNOW THIS CONTINUES TO BE A
CHALLENGE, HOW TO PULL DATA FROM
ALL SORTS OF EXCITING NEW
PLACES, GOOGLE STREET VIEW, HOW
DO YOU PULL THIS INTO CONTEXT
WITH EHR DATA AND TELL A
MEANINGFUL STORY FOR A PATIENT?
WE'RE INTERESTED IN WHAT ARE THE
ANALYSIS TECHNIQUES, WHAT IN THE
MACHINE LEARNING SPACE AND AI
SPACE CAN REALLY IMPROVE THE
GENERATION OF RISK ASSESSMENT
AND INSIGHTS FROM HEALTH DATA
THAT CAN BE INCOMPLETE.
IT CAN CONTAIN ERRORS, YOU MIGHT
BE ASKING A PATIENT TO CHECK
THEIR OWN BLOOD PRESSURE, HOW DO
YOU ACCOUNT FOR SOME OF THE
CHALLENGES THAT ARE GOING TO BE
INCLUDED IN THAT DATA.
WE'RE INTERESTED IN WHAT ARE THE
MOST EFFECTIVE DESIGN FEATURES
FOR THESE TOOLS.
THEY CAN HELP PROMOTE
INDIVIDUALS USING THEM AND
UNDERSTANDING HOW DO YOU MAKE
THEM ACCESSIBLE AND USER
FRIENDLY FOR A VERY WIDE RANGE
OF ABILITIES, EDUCATION LEVELS,
HEALTH LITERACY LEVELS, ET
CETERA, AND FINALLY, WE'RE VERY
INTERESTED WHICH I THINK IS IN
LINE WITH SOME OF THE
CONVERSATIONS WE'RE HAVING
INTEREST THE POTENTIAL OF CHAT
GPT AND THE ADAPTATION OF
LANGUAGE, IS HOW DO WE USE THESE
EMERGING TECHNOLOGIES INCLUDING
DECISION AIDS AND INTERACTIVE
TOOLS TO HELP PEOPLE BEST
UNDERSTAND THE OUTPUTS THAT ARE
GENERATED BY THESE TOOLS AND
MEANINGFULLY INTERPRET THEM AND
UNDERSTAND THE LIMITATIONS
ESPECIALLY OF WHAT THESE
TECHNOLOGIES CAN ACTUALLY
PROVIDE.
SO WITH THAT, I WOULD WELCOME
ANY QUESTIONS OR COMMENTS THAT
YOU MAY HAVE FOR ME AND I'M
EXCITED TO INCORPORATE YOUR
FEEDBACK INTO THIS IDEA.
>>TERRIFIC THANKS ALLYSON.
I WILL TURN TO OMOLOLA OR
LOURDES FOR ANY QUESTIONS OR
COMMENTS?
>>YOU WANT TO START?
>>SURE.
SO THANK YOU FOR THIS.
I WAS WONDERING WITH THE INITIAL
ROUND OF FUNDING WHETHER THERE
WAS A DISTINCTION BETWEEN SO
WEARABLES FOR EXAMPLE, THE KINDS
OF--WHETHER SOCIOECONOMIC
FACTORS CAME INTO PLAY WITH
REGARDS TO WHO USES CERTAIN
KINDS OF DEVICES AND HOW--HOW
YOU ADDRESS THAT?
>>YEAH, THANK YOU FOR THE
QUESTION.
I THINK THAT THAT FALLS--I
HAVEN'T TAKEN MY SLIDES DOWN SO
THAT FALLS UNDER THIS QUESTION
OF HOW DO YOU SCALE AND ACCOUNT
FOR BIAS?
I THINK THAT WILL BE FUNDAMENTAL
THAT ANY APPLICATIONS MRIIDATION
THAT WE RECEIVE, YOU KNOW,
MEANINGFULLY ASSESSES, THE
ABILITY OF THAT TOOL TO BE
GENERALIZED SO IF YOU'RE USING,
YOU KNOW A FIT BIT WATCH THAT
COSTS $300 AND EUROPE NOT, YOU
KNOW SENDING THOSE TO THE BE
USED BY A PILOT GROUP, I THINK
THAT CERTAINLY IS SOMETHING
SOMEWHAT WOULD NEED TO BE
ADDRESS INDEED YOUR APPLICATION
AND WE WILL TRY TO WRITE IT IN A
WAY THAT REALLY REQUIRES AND
CALLS THE REVIEW PANEL TO
CONSIDER THOSE ISSUES AS AN
OVERALL ASSESSMENT OF THE
APPLICATION.
>>THANK YOU FOR THAT.
I ALSO HAD A SECOND QUESTION AND
IT HAS MORE TO DO WITH,
WHETHER--I MAY BE JUST OVERLY
WORRIED BUT THE NEW DATA SHARING
POLICY FROM THE NIH, HAD WHEN IT
COMES TO PERSONAL HEALTH SPACE
AND HOW PARTICIPANTS AND STUDIES
UNDERSTAND THAT, DO YOU THINKA
THERE MIGHT BE ANY HESITATION TO
PARTICIPATE IN STUDIES KNOWING
THAT THIS IS NOT INITIALLY YOUR
EHR DATA BEING SHARED,
ANONYMIZED EHR DATA BEING
SHARED, THERE'S OTHER THINGS, IS
THERE ANY DISCUSSION ABOUT THAT?
>>I GUESS I WOULD SAY, I THINK
IT'S ALWAYS VERY IMPORTANT THAT
IN A RESEARCH DESIGN THAT YOU
ARE UNDERSTANDING HOW TO BEST
COMMUNICATE HOW THE DATA THAT'S
COLLECTED IS GOING TO BE USED BY
THE RESEARCHERS, HOW IT'S GOING
TO BE SHARED, MY UNDERSTANDING
OF THE DATA SHARING POLICY, I
MEAN, I'M INSIDE OF NIH SO MY
PERCEPTION IS VERY DIFFERENT IS
THAT IT'S VALID TO SAY THAT THIS
INFORMATION WILL BE WITHHELD
BECAUSE IT'S PERSONAL.
THERE'S LOTS OF WAYS RESEARCHERS
CAN LIMIT THE WAY THE DATA IS
SHARED.
I DO HEAR YOUR POINT ABOUT HOW
DO YOU THEN COMMUNICATE THAT
EFFECTIVELY WITH RESEARCH
PARTICIPANTS, I THINK, YOU KNOW
IT'S PART OF THESE PROGRAMS, THE
FUNDING PROGRAMS WHEN WE, YOU
KNOW HAVE LISTENING SESSIONS AND
WE EXPLAIN THE PROGRAM TO THE
PUBLIC, I THINK THAT WE CAN MAKE
AN EFFORT TO YOU KNOW CALL
RESEARCHERS TO REALLY THINK
CRITICALLY ABOUT HOW THEY'RE
GOING TO ENGAGE WITH RESEARCH
POPULATIONS AND JUST MAKE SURE
THAT THAT'S DONE IN A WAY THAT
IS GIVEN THE CREDENCE IT
DESERVES, THAT OF COURSE THE
OVERALL NIH POLICY BUT I THINK I
CAN MAKE AN EFFORT TO CALL
SPECIFIC ATTENTION TO IT.
>>THANK YOU.
>>HEIDI I WOULD LIKE TO COMMENT
ON THAT.
I THINK IT'S A TERRIFIC QUESTION
AND IT'S 1 THAT HAS NOT COME UP
IN ANY OF THE CONVERSATIONS I'VE
BEEN INVOLVED WITH ABOUT THE
DAILY BASIS THEA MANAGEMENT AND
SHARING PLAN.
SO WHAT WE'RE DEALING WITH HERE
AND THAT THAT, THE DATA ARE PART
OF THE ISHT VENTION, AS WELL AS
PART OF THE OBSERVATION OF THE
EFFECT OF THE STUDY AND MOST OF
WHAT'S IN THE DATA SHARING PLAN
IS DATA HAS PART OF THE
OBSERVATION, END POINTS,
STARTING POINTS AND THIS IDEA OF
DATA IS THE SUBSTANCE OF THE
INTERVENTION IN THESE CASES, I
THINK IT WILL TAKE POLICY WORK
AND WE HAVE 2 WEEKS JERRY SO, I
THINK IT'S A REALLY GOOD
QUESTION AND I WHILE I AGREE
WITH ALLYSON WE ALWAYS SAY WE
CANNOT SHARE THE INFORMATION
BECAUSE IT'S PERSONAL
INFORMATION BUT I THINK WE WILL
HAVE TO THINK ABOUT THIS AND HOW
WE PRESENT IT TO PEOPLE AND
PROTECT PEOPLE'S RIGHTS BUT
LEARN AS MUCH FROM THE DATA SO
IT'S A VERY DIFFERENT KIND OF
DAILY BASIS THEA THAN THE USUAL
DATA AND RESEARCH.
>>RIGHT SO NIH DID PUT OUT
GUIDANCE ABOUT HOW TO ADDRESS
ISSUES OF PRIVACY AND SO FORTH
IN THE DATA MANAGEMENT AND
SHARING POLICY AND WE WOULD HAVE
TO LOOK AT THAT SOPHISTICATED
SEE IF IT NEEDS DIFFERENT
INTERPRETATION FOR THIS
RESEARCH.
>>REALLY, REALEE IMD QUESTION.
>>THAIRK YOU.
>>LOURDES DID YOU WANT TO MAKE
COMMENTS OR QUESTIONS BEFORE I
MOVE TO JIM.
>>YES, I WAS THINKING ABOUT AND
COB GRATULATIONS THIS IS
ABSOLUTELY AMAZING.
I LOVE THIS KIND OF STUFF.
--WHERE ARE THE LINKS AND I KNOW
YOU ARE TALKING ABOUT PARTNERING
WITH CBOs AND THOSE THINGS BUT
THE BEHAVIOR FOLKS NEED TO BE
TIED INTO THIS IN AN IMPORTANT
WAY BECAUSE ONCE YOU HAVE THE
DATA WHICH IS WONDERFUL AND ALL
OF THIS INFORMATION BUT WHAT DO
DO YOU WITH IT?
I KNOW THAT SUGAR IS NOT GOOD
FOR ME BUT DO I ALWAYS NOT EAT
IT?
DEALING WITH ALL THE SOCIAL
DETERMINANTS OF HEALTH AROUND US
FOR AUSOF US SO THAT IS REALLY
MY SORT OF COMMON QUESTION.
SO WHAT ARE YOUR THOUGHTS ON
THAT?
>>AGAIN, I AM GLAD I LEFT MY
SLIDE UP, BUT I SEE THE
QUESTIONS ABOUT SOCIAL
INTERVENTION RESEARCH,
BEHAVIORIAL CHANGE AND MOST
EFFECTIVE DESIGN FEATURES OF
THESE TOOLS IS 1 PLACE WHERE IT
CAN BE ADDRESSED AND HOW DO YOU
BEST COMMUNICATE WITH PAICIALTS
LOOK BEING AT THE NLM MISSION,
TRYING TO FOCUS ON THE
TECHNOLOGY ASPECT, IT WILL BE
IMPORTANT THAT THIS WORK IS
INFORMED BY SOCIAL SCIENCE
EXPERTISE BY PSYCHIATRIC
EXPERTISE BY BEHAVIORIAL HEALTH
EXPERTISE, SO I DO THINK IT'S
GOING TO BE IMPORTANT TO CALL
THOSE RESEARCHERS INTERACT WITH
THOSE EXPERTISES AS PART OF
THEIR STAFFING ON THESE GRANTS.
SOMETHING THAT I HAVE NOT
MENTIONED BUT HISTORICALLY WE
DID INSIST THAT THESE
APPLICATIONS DESCRIBE A PILOT,
AND I THINK THAT ANY EFFECTIVE
PILOT WOULD CERTAINLY ADDRESS
SOME OF THE ISSUES YOU WERE
MENTIONING ABOUT, YOU KNOW HOW
ARE YOU GOING TO LOOK AT THE
BEHAVIORIAL CHANGE, THAT IS
COMING ABOUT FROM THIS TOOL YOU
DEVELOPED.
THAT WOULD BE PART OF THE
EVALUATION OF TO PILOT.
SO THERE'S DEFINITELY PLACES WE
CAN ADD LANGUAGE TO KIND OF
INSISTS ON THESE OTHER GROUPS
BEING IN CONSULT ON THESE
APPLICATIONS.
>>THANK YOU.
>>SO THIS IS RELATED TO
LOURDES' CONCERN, AT LEAST WE
STARTED CALLING THEM PATIENTS
AGAIN, A LOT OF THESE TEND
TOKING THE PATIENT PRODUCES DATA
AND WE DO THAT TO MAKE RESEARCH
AND MAKE RECOMMENDATIONS AND
GIVE THEM BACK TO THE PATIENTS
AND MAYBE WE NEED TOOLS TO HELP
UNDERSTAND THE INFORMATION BUT
I'M WONDERING IF THERE'S A PLACE
FOR HELPING PATIENTS UNDERSTAND
HOW TO BE PATIENTS?
THAT IS YOU KNOW YOU HAVE A
TOOL, THIS WILL HELP YOUR
DIABETES AND DO WHAT IT SAYS AND
THEY MIGHT OR MIGHT NOT DO THAT
BUT IN MY EXPERIENCE, THEY WANT
TO DROP THEIR BODY OFF AT THE
DOCTORS OFFICE, GET A BEEPER AND
SHOP AT THE MALL AND WHEN THE
BODY'S DONE, THEY PICK IT UP AND
THEY COME BACK 6 MONTHS LATER
AND MAYBE THEY DID WHAT THEY
SAID AND MAYBE THEY WANT THEIR
OIL CHANGED OR WHATEVER, YOU I
DON'T REALLY THINK ABOUT THEIR
ROLE AS A PATIENT IN TERMS OF
COLLECTING INFORMATION, SO WHEN
YOU ASK PEOPLE QUESTIONS ABOUT
THEIR FAMILY, YOU KNOW GHEE, I
NEVER ASKED THEM WHAT KIND OF
CANCER THEY HAD.
SO, YOU KNOW THAT SORT OF THING
AND I WONDER IF FROMY'S PLACE
THAT I COULD GO ON FOR A WHILE,
AS YOU MIGHT SUSPECT, SOME OF
YOU HEARD ME DO THIS ALREADY,
BUT IS THERE A PLACE FOR
RESEARCH IN IMPROVING THE
PATIENT'S ABILITY TO PARTICIPATE
IN THEIR ROLE AS A PATIENT IN
THIS WHOLE PROCESS.
>> I'M GLAD YOU ASKED THIS
QUESTION BECAUSE AS PART OF THAT
WORKSHOP WE HAD A PANEL
DEDICATED ENTIRELY TO
PARTAISS--SYNTH PARTICIPATE IN A
TRIAL--WHAT WAS IT CALLED
INDIVIDUALS AS BAR TIS PANTS
NONAPOPTOTIC THE SUBJECTS IS WAS
THE OVERALL TAKE WAXER --TAKE AD
WHEN YOU BUILD SOMETHING IT'S OF
IMMEDIATE USE TO A PATIENT
POPULATION, THEY ARE SO MUCH
MORE ENGAGED AND EXCITED TO BE
INTERACTIVE AND INVESTED IN THE
DEVELOPMENT OF THE TOOL.
NAOMI DODD'S WORK COMES TO MIND
WHEN SHE WAS COLLECTING
ENDOMETRIOSIS ELEMENTS THROUGH
AN APP AND THEN IT COULD MAKE
PREDICTIONS ABOUT WHEN THEY
WOULD GET THEIR PERIOD, THINGS
LIKE THAT SO PEOPLE WERE REALLY
EXCITED TO INTERACT WITH THE
TOOL BECAUSE THEY IMMEDIATELY
GOT THAT FEEDBACK AND THEY SAW
OW CONTRIBUTING THEIR DATA WAS
BUILDING A BETTER MODEL THAT WAS
RETURNING RESULTS OF THEM.
SO I THINK THAT IS A VERY
IMPORTANT ELEMENT OF THIS WORK
AND IT'S SOMETHING THAT WE'VE
SEEN THE SUCCESSFUL AND IT'S
SOMETHING I'M VERY KEEN TO ROLL
FORWARD INTO THE NEXT
OPPORTUNITY.
>>THANK YOU.
>>YOU MENTIONED ERRORS IN THE
ACTUAL DATA AND WITH THE
INDIVIDUAL CONSUMER PATIENTS
USING BLOOD PRESSURE MONITORS,
PERHAPS THE DAILY BASIS THEA WAS
A VARIABLE QUALITY, BUT THE
TRIEWMENTS THEMSELVES, 1 WONDERS
IF THEY SEE IT IN THE
MARKETPLACE AND IT'S MY
UNDERSTANDING THAT FDA HAS
SOMETHING TO SAY ABOUT THE
CLEARANCE OF ACCURACY OR OF
THESE INSTRUMENTS BUT TO WHAT
EXTENT DO YOU NEED TO DOVETAIL
WITH FDA OR MANUFACTURES OR YOU
WILL BE COLLECTING, THESE
INVESTIGATORS WILL BE COLLECTING
QUITE A BIT OF INFORMATION
PRESUMABLY ABOUT THE ACTUAL
ACCURACY OF THE INSTRUMENTS AS
WELL.
WHAT ROLE DOES THAT PLAY?
>>I GUESS, IF YOU'RE USING A
BLOOD PRESSURE CUFF FOR
RESEARCH, I THINK DEPENDING ON
THE WAY YOU STRUCTURE YOUR
RESEARCH AIMS THAT DOESN'T
NECESSARILY HAVE TO BE UNDER THE
PURVIEW OF FDA, I THINK I'M
GETTING OUT OF THE SUBJECT THAT
I CAN SPEAK ON BUT I THINK, YOU
KNOW THE ACCURACY AND THE ERRORS
OF THESE TOOLS IS VERY
IMPORTANT.
AND THE ABILITY TO USE THEM JUST
BECAUSE THE FDA HAS APPROVED A
BLOOD PRESSURE CUFF FOR USE, IN
A HOSPITAL SETTING, YOU KNOW HOW
IT'S BEING USED AT HOME, HOW
INDIVIDUALS ARE CHOOSING TO USE
IT, HOW OFTEN TO USE IT, THESE
ARE IMPORTANT RESEARCH QUESTIONS
THAT ARE DEEP ROOTED IN THE
ABILITY OF THESE TOOLS TO
PROVIDE MEANINGFUL INSIGHTS AND
I THINK YOU NEED TO ACCOUNT FOR
AN INDIVIDUAL'S ABILITY TO USE
THEM IN ADDITION TO THE OVERALL
ACCURACY OF THE TOOL BY DESIGN
NOT ONLY HOW IT'S DESIGNED BUT
HOW A USER WILL USE IT IN THE
MOST REALISTIC SETTING.
I THINK THOSE ARE BOTH IMPORTANT
QUESTIONS THAT NEED TO BE
ADDRESSED AS IF THEY'RE BEING
USED IN THESE RESEARCH STUDIES.
>>YOU KNOW IT'S AN IMPORTANT
QUESTION TO STUDY AND I KNOW
NHGRI HAS BEEN PUTTING THESE IN
THE RFA'S TO ASK PEOPLE TO
SUPPORT THE ABILITY IF THE FDA
DETERMINES THAT THE TESTS OR
RETURN OF RESULTS FALSES UNDER
THROUGH PERVIEW WHICH IS A
DECISION THEY WILL MAKE
THEMSELVES AND SO BE, YOU OFTEN
DON'T KNOW IF THEY'RE GOING TO
DESIGN THAT THAT ACTIVITY DOES
OR DOESN'T BUT IT MIGHT BE
SOMETHING FOR NLM TO WRITE ABOUT
IN THE RFA THAT WHEN IT GOES OUT
RESEARCHERS WOULD BE PREPARED TO
ADDRESS THAT.
IT MAKES SENSE TO ME.
>>THE USE OF THE BLOOD PRESSURE
CUFF IS 1 THING BUT THESE APPS
THAT DO EQG, THAT SEEMS PRESSING
A BIT.
>>WITH THAT WE DO NEED TO DO A
VOTE FOR THIS.
SO I WILL ASK FOR A MOTION TO
APPROVE THIS CONCEPT CLEARANCE.
JIM, THANK YOU.
SECOND, ANDY, ANYONE OBJECTING
OR ABSTAINING?
OKAY, CONSIDER THAT APPROVED.
AND NOW WE WILL MOVE ON TO OUR
REPORT FROM THE NOMINATING
COMMITTEE FOR THE NEXT BOR
CHAIR.
>>GOOD AFTERNOON EVERYONE'RE
EVERYBODY SO IT'S MY PLEASURE TO
LET YOU KNOW THAT THE COMMITTEE
MET ON MARCH 13th, INCLUDING
MYSELF AND MARY AND JOE, TO
CONSIDER CANDIDATES FOR THE NEXT
BOARD CHAIR.
WE HAD AN EXCELLENT SET OF
CANDIDATES AND A GOOD DISCUSSION
AND AS A RESULT, WE EXTENDED THE
INVITATION TO DR. KRISTI HOLMES
AND SHE HAS GRATEFULLY AGREED TO
TAKE ON THE DUTY SO AT THIS
POINT I WANT TO ASK FOR OUR
OUTGOING BOARD CHAIR TO CALL FOR
A CONCURRENCE TO APPROVE.
>>MOTION TO APPROVE THE
NOMINATION FOR THE NEXT CHAIR,
DELIGHTED.
JIM AND SECOND FROM PHILLIP.
ANY OBJECTIONS?
APPROVED.
SUCCESSOR HAS BEEN NAMED.
THANK YOU.
>>ALL RIGHT.
AND NOW WE'RE GOING TO MOVE ON
TO PATTY WHO'S GOING TO ANNOUNCE
THE OUTGOING BOARD MEMBERS.
PATTY TAKE IT AWAY.
>>THANKS, I PREFER NOT TO
COMMENT BECAUSE I LOVE THESE
BOARD MEMBERS THAT ARE OUTGOING,
BUT ANYWAY, I CAN TELL YOU AFTER
THE TIME PERIOD TOGETHER, WE
ABSOLUTELY RESEARCH TREMENDOUSLY
FORTUNATE, HEIDI WITH YOUR
KNOWLEDGE AND PRACTICAL
KNOWLEDGE OF OUR RESOURCES AND
YOUR CONCEPTUAL KNOWLEDGE OF
CLINICAL GENETICS HAS BEEN
INVALUABLE TO US AS WE GUIDE
THROUGH THESE AREAS AND LOURDES,
HAVE YOU INTEREST IN SO MANY
THINGS AND SKILLS IN SO MANY
THING THIS IS HAS BEEN
TREMENDOUS FOR US.
I'M VERY GRATEFUL PUBLIC SERVICE
IS A GIFT TO THE COUNTRY, AND I
REALLY APPRECIATE IT AND FOR ALL
MEMBERS OF THE TIME, THE EFFORT
AND THE CREATIVE THINKING THAT
THEY HAD GIIVE AND I WOULD LIKE
TO LET LOURDES AND HEIDI SAY A
QUICK MESSAGE TO THOSE COMING ON
BECAUSE WE HAVE OUR 2 PENDING
BOARD MEMBERS COMING IN SITTING
HERE IN THE MEETING WITH US
TODAY AS VITIONITTORS.
--VISITORS.
>>THANKS PATTY.
IT'S CERTAINLY BEEN A DELIGHT TO
SERVE ON THE BOARD, I'VE BOTH
LEARNED SO MUCH FROM MY TIME
HERE.
ASPECTS AND I WAS NARROWLY FOCUS
WHD I STARTED AROUND NCBI AND
THE RESOURCES BUT BEING ABLE TO
REALLY ENGAGE IN AND APPRECIATE
THE WEALTH AND APPROXIMATE
BREATH OF WORK THAT THE NLM
DOES, IT IS JUST SO CRITICAL.
SO IT'S REALLY BEEN JUST A
TREMENDOUS PLEASURE AND DELIGHT
TO BE ON THE BOARD.
I'LL BE SAD TO STEP OFF, BUT NEW
THINGS MUST COME, RIGHT?
>>THANK YOU.
LOURDES?
>>IT'S BEEN A WILD RIDE.
I CAN'T BELIEVE WE DID MOST OF
THIS THROUGH A AN PANDEMIC, IT'S
BEEN INCREDIBLE AND I FEEL LIKE
WOW, I'M LEAVING AT A GOOD TIME
BECAUSE WHILE I'M LEAVING YOU IN
THE HANDS OF AI.
SO--[LAUGHTER]
--NEW CHALLENGES AHEAD, I WISH
YOU ALL WELL AND KNOW THAT IF
YOU EVER NEED ANYTHING, WE'RE
HERE IN LA, IT'S ALWAYS SUNNY IN
LA, WELL, MOST OF THE TIME AND
IF YOU NEED ANYTHING I'M HAPPY
TO SUPPORT YOU IN WHATEVER WAYS
NECESSARY, THANK YOU.
>>THANK YOU VERY MUCH.
I ALSO WANT TO SPEAK TO THE
PERSONAL SACRIFICE THAT PEOPLE
MAKE TO BE ON THE BOARD.
I HAPPEN TO KNOW THAT BOTH
LOURDES, AND HEIDI HAVE RICH
PROFESSIONAL AND PERSONAL LIVES
TO WHICH THE BOARD THEY WERE
ADDED TO THAT I APPRECIATE IT
VERY MUCH THAT THE TIME HAS TO
COME FROM SOMEWHERE, SO PLEASE
THANK YOUR FAMILY AND COLLEAGUES
FOR THE TIME YOU GAVE TO US.
AND NOW I HAVE THE PRIVILEGE OF
ANNOUNCING WARKSDS, I WILL BE
MAKING 3 AOUNCE NOUNSMENTS THIS
AFTERNOON, I AM INCREDIBLY
HONORED TO ANNOUNCE THAT THE
FIRST AWARD GOES TO TODD
DANIELSON.
WHEN I FIRST CAME TO NLM, THEY
SAID LISTEN TO TODD, HE WILL
KEEP YOU OUT OF TROUBLE AND I
DID MOST OF THE TIME.
THIS HAS BEEN AROUND SINCE 1969
AND IT WAS SET UP TO ACKNOWLEDGE
THE WORK OF NLM EMPLOYEES WHO
MADE EXCEPTIONAL CONTRIBUTIONS
TO THE ACHIEVEMENT OF THE
LIBRARY.
YOU HAVE TO HAVE BEEN EMPLOYED
AT LEAST 2 YEARS OF SERVICE TO
THE NLM, I THINK YOU MET THAT
CRITERIA PRETTY EASILY AND WHOSE
WORK HERE HAD SPECIAL
RECOGNITION FOR OUTSTANDING AND
CLEARLY EXCEPTIONAL SERVICES
ANDA VANCES TO OUR MISSION, THIS
NOMINATION WAS CREATED BY TODD'S
EXECUTIVE COLLEAGUES, JERRY AND
MIKE [INDISCERNIBLE] AND I WANT
TO READ IT TO YOU BECAUSE IT'S
REALLY GORGEOUS.
MR. DANIELSON IS THE EXECUTIVE
OFFICER AND ASSOCIATE DIRECTOR
FOR ADMINISTRATIVE MANAGEMENT.
HE'S RECOGNIZED--HE IS BEING
RECOGNIZED FOR HIS EXECUTIVE
LEADERSHIP OF SIGNIFICANT
NLM-WIDE INITIATIVES THAT HAVE
CONTINUED TO STRATEGICALLY
ADVANCE THE NLM'S MISSION.
AMONG THE CONTRIBUTIONS TO THE
LIBRARY, MR. DANIELSON DIRECTS
THE MELT MULTIYEAR RENOVATION
PROMG ECTOMYOSIN INCLUDING 2
BUILDING, 1 OF WHICH IS THE
HISTORIC LANDMARK AND THE DATA
CENTER.
THIS INITIATIVE IS FUNDAMENTALLY
IMPORTANT TO THE FUTURE OF THE
NLM AND MR. DANIELSON HAS
SUCCESSFULLY NAVIGATED THE MANY
COMPLEXITIES FOR THE STUDY HAND
AND READY SKILLS.
HE ALSO PLAYS A CENTRAL ROLE IN
THE MULTIYEAR RENOVATION OF THE
ORGANIZATION STRUCTURE, THE
ORGANIZATIONAL RENOVATION
ISENTIOUS SENTIAL TO BETTER
POSITION OUR PROGRAMS AND
SERVICES TO BETTER FULFILL THE
NLM'S STRATEGIC PLAN AND ADVANCE
DISCOVERY AND HEALTH.
AS A FINAL EXAMPLE,
MR. DANIELSON HAS IMPLEMENTED
WORKFORCE INITTIAIVE ITS TO
INSURE WORKFORCE SAFETY AND
FLEXIBILITIES WHICH WERE
DEVELOPED TO INSURE HIPRODUCT
IVITY THROUGH A 3 YEAR PANDEMIC
AND BUT TO ANTICIPATE THE FUTURE
OF WORK AND CONTINUE TO ATTRACT
THE BEST AND PROPRIETARIEST OF
OUR WORK SHORS.
THEY CLOSED BY NOTING THESE ARE
MERELY EXAMPLES OF RECENT AND
CONTINUING DRIEWKSS THATTED TO'S
MADE TO ADVANCE THE NLM MISSION,
AND WE THANK HIM FOR THESE
EFFORTS AND FOR SO MUCH MORE.
CONGRATULATIONS, TODD.
>>THANK YOU VERY MUCH.
WOULD YOU LOAMACYIC TO SAY A FEW
WORDS?
>>WELL, JUST THANK YOU
DR. BRENNAN FOR THE MANY
OPPORTUNITIES TO EXCEL AND
CONTRIBUTE TO THE NLM COMMISSION
IT'S BEEN AMAZING AND IT'S BEEN
EXCITING AND 1 OF MY BIGGEST
THRILLS WAS THE WORK I RECEIVED
A NUMBER OF YEARS AGO AND
PROBABLY WHEN THAT PICTURE WAS
TAKEN, BY THE LOOKS OF IT.
[LAUGHTER]
SO, AGAIN, THANKS VERY MUCH.
>>WE TRIED TO GET TODD IN THE
PATIENTS IN THE CLINIC UPPER
THIS YEAR BUT IT VOWKSLY DIDN'T
STICK.
ONE OF THE THINGS THAT'S HARD TO
UNDERSTAND FOR PEOPLE WHO AREN'T
IN THE NIH IS WHAT DOES AN
EXECUTIVE OFFICER DO AND WHILE
THEY DO MANY THINGS TO KEEP THE
DIRECTOR FROM DOING BAD THINGS
THEY ACTUALLY HAVE TO KEEP IN
MIND THE ENTIRE INTEGRATION OF
OUR ACCOUNTABILITIES AROUND
BUDGET, FINANCE, ADMINISTRATION,
OUR BUILDING, OUR
RESPONSIBILITIES TO UPHOLD
FEDERAL REQUIREMENTS AND
REGULATIONS, HR AND CHALLENGING
HR ISSUES AND ALSO I DO REMEMBER
LONG CONVERSATION ABOUT CEILING
TILES AND REPAIRING THEM 1 TIME
SO I THINK ARE THERE ARE A LOT
OF ACTIVITIES THEY WANT TO GET
INTO BUT IT IS A POSITION THAT
DOES NOT EXIST IN ANY OTHER PART
OF THE WORLD AS FAR AS I CAN
TELL AND IT'S ESSENTIAL TO OUR
FUNCTION.
I WILL NEXT DURN TO THE FRANK B.
ROGERS AWORD, THIS IS TO EISBETH
MULLEN AND [INDISCERNIBLE].
THIS WAS ESTABLISHED BY THE NLM
DIRECTOR WITH THE GOAL OF
RECOGNIZING EMPLOYEES WHO MADE
SIGNIFICANT CONTRIBUTIONS TO THE
LIBRARY'S FUNDAMENTAL
OPERATIONS, OPERATIONAL PROGRAMS
AND SERVICES.
ELIGIBLE EMPLOYEES ARE THOSE WHO
ARE CURRENTLY PREVIOUSLY
EMPLOYED DURING THE NLM DURING
2022.
LET ME TELL YOU FIRST ABOUT RENE
BOUGARD, SHE A SPECIALIST WITH
THE DIVISION OF TRAINING AND
OPERATIONS, YOU'VE BEEN HEARING
ABOUT THIS DIVISION TODAY, IT'S
A NEW AND VERY IMPORTANT EFFORT
FROM THE LIBRARY TO ORGANIZE OUR
OUTREACH AND TRAINING SERVICES.
SHE'S BEING RECOGNIZED FOR THE
OUTSTANDING LEADERSHIP IN
PROJECT MANAGEMENT AND EFFORTS
TO UPDATE AND ENHANCE THE NLM'S
OUTREACH AND EVALUATION REPORTS
SYSTEM.
THIS SYSTEM IS USED TO COLLECT,
ANALYZE AND REPORT ON ENGAGEMENT
ACTIVITIES, SIMPLY KEEPING TRACK
OF THE NUMBER OF WAYS WE TOUCH
THE PUBLIC HAS BEEN A CHALLENGE
HERE AND THIS SYSTEM HAS
AFFORDED US A WAY TO BETTER
UNDERSTAND AND BETTER INVEST OR
RESOURCES AND TIME.
IN ORD ARER TO PREPARE SHE LED A
TEEM TO DEVELOP NEW REQUIREMENTS
IN DATA FIELDS, USHED TOOK
EXTENSIVE TESTING AND
CORPORATIONS OF LEGACY DATA FOR
OUTREACH TRAINING AND FUNDED
ACTIVITIES BY THE NLM.
WE ARE CONTINUOUSLY CALLING TO
REPORT TO CONGRESS TO EXPLAIN
HOW WE'RE SPENDING FEDERAL
CONTRIBUTIONS TO THE NLM AND THE
SYSTEMS HAVE REALLY ALOUD US TO
DO THAT IN A VERY EFFECTIVE WAY.
FOR EFFORTS HAVE ALSO IPT
GREATER IMPROVED EFFORTS BY,A
LOWING NLM TO BETTER,
VALENTINEDUATE THE EFFECTIVENESS
OF OUR ACTIVITIES, MANAGE AND
CONNECT DATA POINTS AND IMPROVE
OVERALL TRANSPARENCY.
I'M NOT SURE RENE IS ON THE CALL
RIGHT NOW BUT IF SHE IS, I WILL
HAVE YOU SPEAK IN A MINUTE.
>>THE COMMITTEE FOR THE AWARD
THIS YEAR ACTUALLY RECOMMENDED 2
CANDIDATES AND RECOMMENDED I
MAKE THE AWARD TO 2 CANDIDATES
EVEN THOUGH THEIR WORK IS
SLIGHTLY DIFFERENT AREAS.
MISS ELIZABETH MULLEN IS THE WEB
DEVELOPMENT AND SOCIAL MEDIA
MANAGEMENT IN THE WEB DIVISION
OF THE LIBRARY OPERATIONS AREA.
SHE'S BEING RECOGNIZED ARE FOR
THE OUTSTANDING SUCCESS OF THE
DIVISION'S BLOG CALLED
CIRCULATING NOW.
SINCE IT LOST ABOUT A DECADE
AGO, IT'S ABOUT SURGICAL
INFORMATION AT THE NLM AND WORK
IN OUR HISTORICAL QUICK
COLLECTIONS.
MISMULLEN'S LEADERSHIP,
TECHNICAL SKILLS MAKE THE
VISIONS ACCESSIBLE AND ENGAGING
TO READERS THIS IMPROVED THE
PROGRAM BY GROWING THE
READERSHIP TO OVER
3,699,900,000,000 NLM SOCIAL
MEDIA FOLLOWERS.
THIS MAKE ITS A LEADING MEDICAL
HISTORY BLOG IN THE WORLD.
IN JULY 2022, IT WAS RAIRCHGED
NUMBER 1 AMONG THE 25 BEST
MEDICAL HISTORY BLOGS AND
WEBSITES BY [INDISCERNIBLE] SPOT
WHICH COLLECTS AND RANKS
INTERNET CONTENT.
IT'S ALSO BEEN CITED BY MEDIA
OUTLETS LIKE THE WASHINGTON POA.
SO I CONGRAT THESE OUTSTANDING
EMPLOYEES, FOR THEIR
CONTRIBUTIONS TO THE NATIONAL
LIBRARY OF MEDICINE, AND
ELIZABETH IF YOU ARE ON AND
RAISE YOUR HAND, YOU COULD SAY A
FEW THINGS TO US?
THE CHALLENGE WE HAVE IN THIS
VIRTUAL WORLD IS WE CAN'T SEE OR
HEARIMES SPHR THEM.
THANK YOU VERY MUCH AND WE WILL
AWARD THESE INDIVIDUALS.
HEIDI I WILL TURN IT BACK TO
YOU.
>>DO YOU SEE BETH MULLEN?
SHE MIGHT NOT BE LISTENING?
>>WELL, CONGRATULATIONS TO ALL
OF OUR AWARDEES, FROM HERE WE
WILL MOVE TO OUR CLOSED PORTION
AND FROM THAT I WILL ASK THE
MEETING TEAM TO MAKE THOSE
ASSIGNMENTS AND I WISH ALL OF
YOU A GOOD REST OF THE DAY AND
THANK YOU FOR JOINING US.
>>CAN I ASK HEIDI, SINCE I'M A
NEW MEMBER, CAN I SEE IF I GET
TRANSFERRED OVER, WE CAN'T UNTIL
YOU'RE FULLY ADMINISTRATIVELY
PROCESSED, WE
CANNOT--UNFORTUNATELY WE CAN'T
SEND YOU OVER.
>>OH, THANK YOU, I WAS
WONDERING THE SAME.
>>YEAH.
>>THESE ARE INCOMING BOARD
NUMBERS ACCIDENT THE NOMINEES
FOR 23 RIGHT?
>>THAT IS CORRECT DR. BRENNAN.
>>OKAY BUT CAN ANDREW AND LAURA
BE TRANSFERRED OVER?
>>SO WE'RE IN THE SAME BOAT, I
THINK?
>>HAVE YOU NOT GOTTEN YOUR
FINAL LETTER OF APPOINTMENT.
I GUESS WE'RE GIVING YOU 15
MINUTES OF FREE TIME.
THANK YOU VERY MUCH EVERYONE.