>>I CALL THE 189th
MEETING OF THE NATIONAL LIBRARY
OF MEDICINE BOARD OF REGENTS TO
ORDER.
I'D LIKE TO WELCOME DR. JIM
SANINO AND THE FULLY APPOINTED
MEMBERS.
CONGRATULATIONS.
A FEW HOUSEKEEPING ANNOUNCEMENTS
BEFORE WE BEGIN.
DURING THE DISCUSSION AND ANY
Q&A SESSIONS WE'LL USE THE ZOOM
RAISE HAND FEATURE TO BE
RECOGNIZED BY THE CHAIR.
I'LL MONITOR THE PARTICIPANTS
WINDOW AND TRY TO RECOGNIZE
PARTICIPANTS WITH RAISED HANDS
IN THE ORDER I SEE THEM RAISED.
IF I MISSED THEM, HOWEVER, FEEL
FEEL FREE TO JUMP IN.
MEMBERS OF THE NLM MEDIA
OPERATIONS TEAM WILL BE
MONITORING THE CHAT WINDOW AND
AVAILABLE TO PROVIDE ANY
TECHNICAL ASSISTANCE NEEDED AND
READ THEM AT NLM MEDIA
OPERATIONS TEAM ONE WORD AT
NLM.NIH.gov.
AND PATTI MENTIONED THIS A BIT
BUT I SHOULD UNDER SCORE AS WE
PROCEED REMEMBER TO BE MIND
IFFUL OF YOUR CAMERA AND MUTE
YOURSELF WHEN NOT PARTICIPATING
IN A DISCUSSION AND MEDIA
OPERATIONS WILL ASSIST TO SWITCH
OFF CAMERAS AND MICS TO KEEP THE
MEETING FREE OF DISTRACTIONS.
THAT'S THE HOUSEKEEPING ISSUES
AT THE MOMENT ANYWAY.
WITH THAT, I THINK WE CAN MOVE
TO THE REPORT FROM THE OFFICE OF
THE SURGEON GENERAL.
I UNDERSTAND WE'RE JOINED THIS
MORNING BY REAR ADMIRAL DENISE
HINTON.
SHE'S THE NEWLY APPOINTED DEPUTY
SURGEON GENERAL OF THE UNITED
STATES PUBLIC HEALTH SERVICE AND
RESPONSIBLE FOR ADVISING AND
SUPPORTING THE SURGEON GENERAL
REGARDING OPERATIONS OF THE
COMMISSIONED CORPS AND THE BEST
SCIENTIFIC INFORMATION TO
ADVANCE THE HEALTH OF THE
NATION.
FROM JULY 17 TO OCTOBER 2021,
SHE SERVED AS CHIEF SCIENTIST AT
THE U.S. FOOD AND DRUG
ADMINISTRATION.
SHE PROVIDED STRATEGIC
LEADERSHIP, COORDINATION AND
EXPERTISE TO SUPPORT SCIENTIFIC
EXCELLENCE, INNOVATION AND
CAPACITY TO ACHIEVE FDAs PUBLIC
HEALTH MISSION.
PRIOR TO JOINING THE
COMMISSIONED CORP SHE SERVED IN
THE U.S. AIR FORCE AS A NURSE
OFFICER AND EARNED HER BACHELOR
OF SCIENCE IN NURSING FROM
FLORIDA STATE UNIVERSITY AND HER
MASTER OF SCIENCE FROM BOSTON
UNIVERSITY.
REAR ADMIRAL HINTON IS A FELLOW
OF THE AMERICAN ACADEMY OF
NURSE.
WE APPRECIATE SHE'S HERE WITH US
ALONG WITH DR. SAMARI DIRECTOR
OF SCIENCE AND GIVE US THE
REPORT.
THANK YOU.
>> GOOD MORNING TO EVERYONE.
I APPRECIATE BEING INVITED WITH
YOU HERE TODAY.
I AM THE NEW DEPUTY SURGEON OF
THE PUBLIC HEALTH SERVICE AND
APPRECIATE THE INVITATION AND
ACCOMPANIMENT OF THE DIRECTOR OF
SCIENCE AND POLICY WITHIN THE
OFFICE OF THE SURGEON GENERAL.
I'LL PROVIDE AN OVERVIEW WHICH
WILL INCLUDE A BRIEF OVERVIEW
AND ROLE AND DEPLOYMENT MISSIONS
OVER THE LAST FIVE YEARS AND
LASTLY I WILL DISCUSS OUR NEW
READY RESERVE COMPONENT AND THE
PUBLIC HEALTH EMERGENCY RESPONSE
STRIKE TEAM WE CALL FIRST TEAM.
WE'LL TALK ABOUT OUR CURRENT
LEADERSHIP.
THE COMMISSION CORPS IS UNDER
THE DIRECTOR OF THE ASSISTANT
SECRETARY OR HEALTH AND SURGEON
GENERAL.
CURRENTLY ADMIRAL LEVINE SERVE
AS A COMMISSIONER OF THE CORPS.
WE'RE APPROXIMATELY 6,000 STRONG
AND AVAILABLE TO THE PRESIDENT
AND TO THE HHS SECRETARY TO
RAPIDLY RESPOND TO PUBLIC HEALTH
EMERGENCIES AROUND THE WORLD.
WE'RE UNIQUE IN THAT WE'RE THE
ONLY UNIFORM SERVICE IN THE
WORLD DEDICATED TO PUBLIC
HEALTH.
OUR OPERATING BUDGET IS FUND THE
SERVICE AND SUPPLY FUND.
WE HAVE 11 PROFESSIONAL
CATEGORIES.
WE HAVE MEDICAL, DENTAL, NURSE,
PHARMACIST, SCIENTIST, ENGINEER,
THERAPIST, VETERINARIANS,
DIETITIANS, ENVIRONMENTAL HEALTH
AND HEALTH SERVICES ARE OUR
MULTI-DISCIPLINARY CATEGORY.
AS THE MISSION AND PUBLIC HEALTH
SERVICE IS TO PROTECT AND
PROMOTE AND ADVANCE THE HEALTH
AND SAFETY OF OUR NATION.
THE COMMISSION CORPS ACHIEVE
THIS THROUGH OUR MISSION AND
MISS IS FOR RAPID AND EFFECTIVE
RESPONSE TO NEEDS AND LEADERSHIP
IN EXCELLENCE AND ADVANCEMENT.
45% OF OUR OFFICERS ARE ASSIGNED
TO VULNERABLE POPULATION AND
RESPOND TO NATIONAL AND GLOBAL
HEALTH RESPONSES WITHIN THE LAST
FIVE YEARS IT'S BEEN A MAJOR
FOCUS OF OUR SERVICE.
THE COMMISSION CORPS FOCUS OVER
THE LAST 20 YEARS HAS BEEN
RESPONDING TO THE PUBLIC HEALTH
EMERGENCIES.
OUR DEPLOYMENTS HAVE DECREASED
EXPONENTIALLY FROM THE 2014 TO
2015 EMERGENCIES INCLUDING EBOLA
OUTBREAK AND HURRICANES TO THE
CORONAVIRUS PANDEMIC.
THE CORPS HAS BEEN ASKED TO
TRAVEL THE WORLD TO CARE FOR THE
UNDER SERVED POPULATIONS.
ONE OF OUR GOALS IS TO ENSURE
THE CORPS REMAINS THE RAPID
FORCE FOR THE NATION.
AND WE CERTAINLY LEARNED A LOT
OVER THE COURSE OF THE YEARS AND
WE'RE GOING TO PUT THE LESSONS
LEARNED TO IMPROVE OUR RESPONSES
MOVING FORWARD AS WELL.
THE COVID-19 PANDEMIC HAS BEEN
THE LARGEST DEPLOYMENT IN OUR
SERVICE'S HISTORY.
OUR OFFICERS WERE ON THE FRONT
LINES SINCE THE START FROM
EFFORTS IN JAPAN ABOARD THE
CRUISE SHIPS HELPING TO EVACUATE
CITIZENS AND SERVING AS
APPLICATION REVIEWERS IN FDA TO
PARTICIPATING IN THE CDC
ADVISORY COMMITTEES TO SERVING
AND WORKING WITH ALL THE OTHER
OPERATING DIVISIONS AND
DIRECTORS IN ACADEMIA AND THE
LIKE.
WE HAVE SERVED AS A VERSATILE
FORCE WITH OUR EXPERTISE ACROSS
THE WORLD.
AS I ALLUDED TO, THE CORPS IS
EXPERIENCING THE MOST DEPLOYMENT
REQUIRING OVER 4500 OFFICERS
DEPLOYING.
THIS DOES NOT INCLUDE OFFICERS
WHO HAVE DEPLOYED VIA AGENCIES
SUCH AS THE CENTERS FOR DISEASE
CONTROL AND THE INDIAN HEALTH
SERVICE.
THESE DEPLOYMENTS HAVE MADE
CLEAR BOTH THE CRITICAL NEED FOR
THE COMMISSION CORPS TO RESPONSE
TO PUBLIC HEALTH EMERGENCIES AS
WELL ADDITIONAL INVESTMENTS TO
MAKE THE CORPS MORE DEPLOYABLE,
RESPONSIVE AND EFFECTIVE.
TO STRENGTHEN THE INFRASTRUCTURE
AND DEPLOYMENT READINESS OF THE
CORPS THE BUDGET SUBMISSION IS
FOCUSSED ON THREE CRITICAL
PRIORITIES.
THIS IS FOR OUR READY RESERVE
UNIT, OUR PUBLIC HEALTH
EMERGENCY STRIKE RESPONSE TEAM.
OUR READY RESERVE IS A NEW
COMPONENT ESTABLISHED UNDER THE
CARES ACT IN 2020.
THE CORPS WILL PROVIDE TRAINED
AND READY PERSONNEL TO FILL
CRITICAL PUBLIC HEALTH NEEDS AND
SUPPORT BUT THE COMMISSION
CORPS'S CAPACITY TO RESPOND TO
REGIONAL, NATIONAL AND GLOBAL
EMERGENCIES AND IMPROVE ACCESS
TO HEALTH SERVICE.
WE'LL WORK TO PRESERVE CLINICAL
CARE POSITIONS BY MAINTAINING
HEALTH PROFESSIONALS READY FOR
DEPLOYMENT WITHOUT JEOPARDIZING
THE ROLES OF PHYSICIANS IN HARD
TO FILL ROLES AND HAVE
PROFESSIONAL WHO'S CANNOT COMMIT
TO A FULL-TIME POSITION AND
ENABLE ACCESS TO SPECIALIZED
SKILL SETS THAT WOULD BE
IMPRACTICAL IN FULL TIME ACTIVE
DUTY POSITIONS.
THE RESERVE CORPS IS DESIGNED TO
AUGMENT AND BACK FILL AND
SUPPORT ACTIVE DUTY COUNTERPARTS
IN RESPONSE TO HEALTH EMERGENCY.
THEY PROVIDE A TOOL SET ACROSS A
LOT OF PROFESSIONAL CATEGORIES
AND ARE PUBLIC HEALTH
PROFESSIONAL CAN NOTE COMMIT TO
AN ACTIVE DUTY POSITION.
THEY'RE AVAILABLE AT THE REQUEST
AT THE PRESIDENT, SECRETARY AND
ASSISTANT SECRETARY FOR HEALTH
AND UTILIZED AS A SUSTAINED
FORCE INITIALLY FOR A DURATION
NOT TO EXCEED ABOUT 20 DAYS
VERSUS OFFICERS WHO TYPICALLY
DEPLOY IN 30-DAY ROTATIONS.
I'LL TELL YOU MORE ABOUT THE
PUBLIC HEALTH AND EMERGENCY
RESPONSE STRIKE TEAM.
THE FIRST OFFICERS ARE FULL TIME
ACTIVE DUTY OFFICERS AND THEIR
FIRST ON THE GROUND AND THEY'RE
READY TO RESPOND WITHIN 8 HOURS
TO URGENT PUBLIC HEALTH
EMERGENCIES OR CRISES SUCH AS
OPIOID RESPONSE TEAM.
THEY'RE READY TO DEPLOY
MULTIMEDIALY
IMMEDIATELY AND THIS REQUIRED
AND ALLOWS NO SUPERVISORY
APPROVAL.
THEY DEPLOY FOR EXTENDED TIMES
SERVICE OFFICERS WHO TYPICALLY
DEPLOY FOR 30 DAYS I PREVIOUSLY
MENTIONED.
WHEN NOT DEPLOYED, THESE
OFFICERS ARE INVOLVED IN
TRAINING OR DETAILED TO AGENCIES
TO FILL SHORT TERM STAFFING GAPS
AND TRAIN WITH MILITARY AS
NEEDED.
THIS PROGRAM DEVELOPMENT HAS
BEEN UNDERWAY FOR APPROXIMATELY
THE LAST YEAR SINCE FY21.
THIS ALLOWS FOR MORE INTEGRATED
TRAINING FOR THE OFFICERS TO BE
ABLE TO MEET THE NEEDS FOR
VARIOUS SERVICES.
I'LL TALK ABOUT THE TRAINING
OPPORTUNITIES.
THE COMMISSION CORPS WAS EXCITED
TO RECEIVE FUNDING FOR TRAINING
AND EQUIPMENT.
THIS WILL GIVE US THE
OPPORTUNITY TO RESPOND TO THE
TRAINING NEEDS OF OUR OFFICERS
SO THEY CAN REMAIN CLINICALLY
COMPETENT.
WE'LL PROVIDE CHEMICAL,
BIOLOGICAL AND EXPLOSIVE
AWARENESS AND RESPONSE TRAINING
AND WE HAVE THE OPPORTUNITY TO
ENGAGE PARTNERS TO ASSIST IN
DRAINING FOR DISASTERS AND
INFECTIOUS DISEASE OUTBREAKS.
I WANTED TO AGAIN THANK YOU FOR
YOUR TIME AND YOUR INTEREST IN
LEARNING MORE ABOUT THE
COMMISSION CORPS.
WE'VE BEEN BUSY WITH DE
EMPLOYMENTS AND MODERNIZATION
EFFORTS.
WE LOOK FORWARD TO CONTINUING TO
GROW AND MEET THE NEEDS OF OUR
SERVICE MEMBERS AND EXTERNAL
STAKEHOLDERS.
I DO WANT TO TURN THE PODIUM
OVER TO DR. AL SAMARI TO PROVIDE
AN OVERVIEW OF EXTERNAL FACING
OPPORTUNITIES AND PUBLIC HEALTH
REPORTS AND OUR PARTNERSHIP
THERE AND THANK YOU FOR YOUR
TIME TODAY AND OVER TO YOU.
>> THANK YOU, I APPRECIATE THAT.
THE BACKGROUND ON THE AMAZING
WORK THE PUBLIC HEALTH SERVICE
HAS BEEN DOING DURING THE
PANDEMIC AND BEFORE THE
PANDEMIC.
THANK YOU, MR. RAMBO AND
DR. BRENNAN FOR THE OPPORTUNITY.
ACKNOWLEDGING TWO YEARS INTO THE
PANDEMIC IT UNDER SCORES THE
IMPORTANCE OF COMMUNICATION AND
SCIENCE AND THE ROLE OF THE
NATIONAL LIBRARY OF MEDICINE.
SO MUCH OF THE WORK YOU DO WITH
PUB MED AND NCBI AND THE TOOLS
FOR THE PUBLIC ARE SUCH
INVALUABLE RESOURCES FOR
COMMUNICATING FOR THE COMMUNITY
AS WELL AS THE PUBLIC AND I JUST
WANTED TO SHARE A LITTLE BIT
ABOUT SOME OF OUR WORK WITH
COVID-19 AS WELL AS THE OTHER
PRIORITIES IN OUR OFFICE.
AS YOU RECALL FROM OUR FIRST
ACCREDITATION A FEW MONTHS AGO,
THE MAIN FOCUS IS IN TWO AREAS.
IT'S HELPING THE NATION GET
THROUGH THE COVID-19 PANDEMIC AS
WELL AS HELPING THE NATION
RECOVER AND HEAL WITHIN THE
PANDEMIC.
THE COVID-19 PANDEMIC THE MAIN
PRIORITIES ARE INCREASING
CONFIDENCE IN THE VACCINE,
HAVING MITIGATE THE IMPACT OF
COVID-19 ON INDIVIDUALS AND
COMMUNITIES.
IT'S BEEN TRYING TO UNDERSTAND
QUICKLY AND RESPOND TOE THE
EMERGENCE OF THE OMICRON VARIANT
AS WELL AS LOOKING FORWARD AND
WHAT IS THE NEXT PHASE AND HOW
TO TRANSITION AND THIS WORK HAS
TAKEN A RANGE OF FORMS FROM
WHITE HOUSE BRIEFING AND
LISTENING SESSIONS AND EVENTS
WITH THE VOICES OF TRUSTED
PERSONS.
SINCE SEPTEMBER, AND WENT WITH
THE CLOSING OF SCHOOLS AND SUCH
DISPART ITIES IN RESPONSE AND
INDIVIDUAL AND MASKS,
VENTILATION, VACCINES AND AS
APPROVAL OF BOOSTERS AND PEOPLE
GETTING THEIR BOOSTERS AND THE
UPTAKE PARTICULARLY FOR
CHILDREN, UNFORTUNATELY VACCINE
UPTAKE AMONG CHILDREN UNDER 11
IS STILL ABOUT 20% ACROSS THE
COUNTRY.
THOSE ELIGIBLE WE'RE HOPING THE
VACCINE FOR CHILDREN UNDER 5 IS
UNDER REVIEW AND DISCUSSION.
THESE NEXT COUPLE WEEKS AT FDA
AND CDC REALLY TRYING TO DRIVE
AND ADDRESS MISINFORMATION AMONG
PREGNANT PEOPLE AND A KEY GROUP
THAT HAS LOW VACCINATION
COVERAGE AS WELL AS
DISPROPORTIONATELY AFFECTED
COMMUNITIES LIKE COMMUNITIES OF
COLOR.
WE CONTINUE TO BE VERY
INTERESTED IN THE WORK TO COMBAT
MISINFORMATION.
WE'VE SEEN DR. MURPHY CONTINUE
TO SPEAK ON THAT AND ONGOING
TESTIMONY RELATED TO THAT.
I WON'T LIST THE PRESS
INTERVIEWS TO COMMUNICATE THE
LATEST GUIDANCE ON COVID-19 AND
CONVERSATIONS WITH THE COMMUNITY
CORPS AND OUTREACH TO GROUPS
LIKE THE PATIENT TOWN HALL AND
PTA AND REACHING DIFFERENT --
THE NEXT SLIDE IS RELATED TO
MISINFORMATION.
IN NOVEMBER OUR OFFICE RELEASED
A COMMUNITY TOOL KIT FOR
ADDRESSING HEALTH MISINFORMATION
AS THE KEY NEXT STEP IN THE
EFFORT AND THE TOOL KIT OFFERED
A DIVERSE PERSPECTIVE IDENTIFY
SOME OF THE COMMON TYPES OF
HEALTH MISINFORMATION ESPECIALLY
THOSE SEEN ONLINE SUCH AS MEMES
AND MISLEADING GRAPHS, EDITED
VIDEOS, AND IT WALKED THROUGH
WHY'S IT TEMPTING TO SHARE
MISINFORMATION AND CREATE MORE
MISINFORMATION AND LOOK TO
TEACHERS AND LEADERS TO HELP THE
SPREAD OF MISINFORMATION IN
THEIR COMMUNITIES.
IF YOU DON'T HAVE THAT LINK, I'M
HAPPY TO SHARE THAT IN THE CHAT.
SO THE NEXT YOU PROBABLY SAW IN
DECEMBER WE HIGHLIGHT THE IMPACT
OF COVID-19 ON YOUTH MENTAL
HEALTH AS WELL THE PREEXISTING
CRISIS OF MENTAL HEALTH
CHALLENGES AMONG YOUTH PRECEDING
THE COVID-19 PANDEMIC.
THIS ADVISORY WAS LAUNCHED IN
LOS ANGELES WHERE THE SURGEON
GENERAL ADDRESSED THIS AND
CALLED ON STAKEHOLDERS IN
ADDRESSING THIS ISSUE.
HE'S TESTIFYING BEFORE THE
SENATE FINANCE COMMITTEE AS WE
SPEAK RIGHT NOW ON THE ISSUE.
I THINK IT SPEAKS TO THE
IMPORTANCE OF IT AND SOME
BACKGROUND IN TERMS OF THE ROLE
OF THE ADVISORY AND THE
STAKEHOLDERS THAT WERE
IDENTIFIED AND RECOMMENDATIONS
INCLUDING YOUNG PEOPLE AND THEIR
FAMILY AND THEIR CAREGIVERS,
EDUCATORS, HEALTH CARE
ORGANIZATIONS AND COMPANIES,
MINI ORGANIZATIONS AND COMMUNITY
ORGANIZATIONS FUNDERS AS WELL
FEDERAL STATE AND TRIBAL AND
LOCAL GOVERNMENTS AND THERE WERE
RESEARCH RECOMMENDATIONS WHERE
WE IDENTIFIED SOME GAPS.
AND DURING THE TIME IN LOS
ANGELES DR. MURPHY SPOKE TO HIGH
SCHOOL STUDENTS IN COMPTON TO
LEARN ABOUT THEIR EXPERIENCES
AND ADJUSTING TO LEARNING AND
WITH MEMBERS IN THE INDUSTRY TO
BRAIN STORM HOW TELEVISION AND
MOVIES DEPICT MORE ACCURATELY
THE IMPACT OF MENTAL HEALTH IN
THEIR PROGRAMMING.
AND HE ALSO MET WITH THE THEN
CALIFORNIA SURGEON GENERAL.
THIS IS HIGHLIGHTING THE TOP
LINE RECOMMENDING MENTAL HEALTH
AND LEARN FROM DIFFERENT
EMOTIONS AND ENSURE EVERY CHILD
HAS ACCESS TO QUALITY HEALTH
CARE AND REACH CHILDREN WHEREVER
THEY ARE AT HOME AND COMMUNITY
AND CHILDCARE SETTINGS AND
EXPAND SUPPORT FOR EARLY
CHILDHOOD EDUCATION TO ENSURE
THEY CAN MEET CHILDREN'S NEEDS.
AND MORE BROADLY THERE'S A
RECOMMENDATION TO ADDRESS THE
ECONOMIC AND SOCIAL BARRIERS
THAT CONTRIBUTE AND CAN DRIVE
POOR MENTAL HEALTH FOR YOUNG
PEOPLE AND THEIR FAMILIES AND
CAREGIVERS AND LASTLY THE TOP
LINE RECOMMENDATIONS AND THERE'S
MANY FROM THE ADVISORY TO
INCREASE THE TIMELY COLLECTION
OF RESEARCH TO MORE RESPOND TO
THE NEEDS OF COMMUNITIES
ESPECIALLY THOSE WHO HAVE
MULTIPLE RISK FACTORS AND TO
CONTINUE TO DO RESEARCH ON THE
RELATIONSHIP BETWEEN TECHNOLOGY
AND YOUTH MENTAL HEALTH AND
CALLING ON TECHNOLOGY COMPANIES
TO BE MORE TRANSPARENT WITH
THEIR DATA TO ENABLE MORE
RESEARCH ON THIS CRITICAL ISSUE.
ONE OF THE AREAS THAT WE'RE VERY
INTERESTED IN IS THE WELL BEING
AND BURNOUT AND MENTAL HEALTH OF
HEALTH CARE WORKERS AND BOTH
PRECEDING THE PANDEMIC AND
EXACERBATED BY THE PANDEMIC.
WE HAVE BEEN ENGAGING WITH
INTERNAL AND EXTERNAL
STAKEHOLDERS INCLUDING DOCTORS
ROSETTI AND ROSENBLOOM.
DR. MURPHY IS THE CO-CHAIR OF
THE NATIONAL ACADEMY OF
MEDICINE'S ACTION COLLABORATIVE
AND SO MORE ON THAT ISSUE
HOPEFULLY SOON.
CONTINUE TO FOCUS ON MENTAL
HEALTH.
I THINK THIS ISSUE CUTS ACROSS
EVERYTHING THAT WE'RE DOING BOTH
IN HEALTH CARE WORKER WELL BEING
AND IN ADDRESSING LONELINESS AND
ISOLATION.
THERE'S A SHORT PERSPECTIVE
PIECE ON SOCIAL ISOLATION AND
THAT'S ANOTHER AREA OF WORK
WE'RE WATCHING AND ALSO LOOKING
AT THE FLIP SIDE OF LONELINESS
AND ISOLATION WHICH IS BUILDING
COMMUNITY INTERVENTION.
AND THE LAST IS WHAT WE'RE ALL
GRAPPLING WITH, WHAT IS THE NEW
NORMAL AFTER COVID-19 LIKE AND
HOW DO WE MAKE THE TRANSITION
AND PEOPLE ARE RECOGNIZING THE
NEED FOR A NATIONAL DIALOGUE TO
MAKE SENSE OF THE PANDEMIC AND
MOVE BEYOND IT AS A COUNTRY.
WE'VE HELD A SERIES OF FIRE SIDE
CHATS AND PODCASTS ON THE TOPIC
AND REALLY ENGAGING ON WHAT DOES
A PEOPLE CENTERED SOCIETY LOOK
LIKE AND COMMUNITY AND
CONNECTION LOOK LIKE AND SHARE
MORE ON THAT IN THE FUTURE.
AND THE LAST SLIDE I WANTED TO
HIGHLIGHT OTHER AREAS OF WORK
WHICH INCLUDES PUBLIC HEALTH
REPORTS AND THE GOAL OF ISSUING
SIX PERSPECTIVE PIECES EACH YEAR
AND WE COLLABORATED WITH NIH IN
SUPPORT OF THEIR RELEASE OF
RURAL HEALTH IN AMERICA AND
DR. MURPHY COLLABORATED WITH THE
NIH DIRECTOR DR. FRANCIS COLLINS
ON THE JOURNAL OF MEDICINE
COMMENTARY WHICH CALLS OUT THE
WAY THAT THE NIH REPORT
IDENTIFIED CALL IT THE ONGOING
DISPARITIES AND ACCESS AND THE
IMPACT OF SUBSTANCE ABUSE AND
THE ROLE OF SOCIAL AND ECONOMIC
CONDITIONS AND LAST THING I
WANTED TO HIGHLIGHT SGRSs IN
PROGRESS THROUGH THE OFFICE OF
SMOKING AND HEALTH AND HOPING TO
BE RELEASED IN LATE 2022 AND
MORE ON THAT IN THE FUTURE.
WITH THAT, I JUST WANTED TO
ACKNOWLEDGE TAYSHA SHORT AND
OTHERS FOR ALL THEIR WORK AND
SUPPORT ON THESE ISSUES AS WELL
AS THE REST OF SCIENCE AND
POLICY TEAM AND OUR OFFICE AND
AN INCREDIBLE TEAM AND WITH THAT
THANK YOU SO MUCH.
LET ME KNOW IF THERE ARE ANY
QUESTIONS.
>> DR. AL SAMARAI AND REAR
ADMIRAL HINTON.
THIS GROUP PARTICULARLY
APPRECIATE THE SCOPE AND
CHALLENGES FACING THE OFFICE OF
THE SURGEON GENERAL AND THESE
UNPRECEDENTED TIMES AND WHAT YOU
ALL ARE DOING TO TRY TO ADDRESS
THOSE.
WE ONLY HAVE A COUPLE OF MINUTES
BUT WE ARE OPEN FOR ANY
QUESTIONS THAT THE BOARD MAY
HAVE FOR OUR GUESTS FROM THE
OFFICE OF THE SURGEON GENERAL.
>> LOURDES HAS A QUESTION.
>> THANK YOU.
THANK YOU DR. HINTON AND AL
SAMARAI.
SOME OF THE MATERIALS HAD REAL
CULTURAL RELEVANCE AND WONDERING
IN WHICH WAY DID YOU ENSURE YOU
HAD DIVERSE COMMUNITIES
PARTICIPATE IN THEIR DEVELOPMENT
IN ANY WAY AND ARE THEY
AVAILABLE IN LANGUAGE LIKE IN
SPANISH?
>> WE ARE WORKING ON A SPANISH
VERSION OF THE MENTAL HEALTH
ADVISORY AND TRYING TO ENSURE
IT'S NOT JUST A TRANSLATION BUT
CULTURALLY RELEVANT AND
CULTURALLY TRANSLATED SO THAT'S
UNDER DEVELOPMENT.
I DON'T HAVE AN EXACT TIME LINE
WHEN THAT WILL BE RELEASED.
OUR COMMUNICATIONS AND
ENGAGEMENT TEAM HAS BEEN
DELIBERATE ON WHAT COMMUNITIES
WE'RE REACHING OUT TO AND HAVING
CONVERSATIONS WITH AND REALLY
ENSURING THERE'S A BROAD
CULTURAL AND ETHNIC DIVERSITY OF
THE VOICES THAT WE'RE HEARING
FROM IN THE PROCESS.
THANK YOU SO MUCH FOR THAT
QUESTION.
>> THANK YOU.
>> ANY OTHER QUESTIONS?
>> THANK YOU IT'S INCREDIBLE
WORK GETTING PEOPLE ON THE
GROUND AND PEOPLE WHERE THEY
NEED TO BE FOR THE CRISES ARE
CRITICAL AND THE KEY ISSUES
FACING THE COUNTRY WITH COVID
AND MENTAL HEALTH ARE IMPORTANT
AS WELL.
MY QUESTION IS HOW THE -- IT'S
EASY TO UNDERSTAND HOW THE WORK
GETS DONE WHEN YOU'RE ON THE
GROUND AND DOING THE WORK.
WHEN YOU'RE MAKING
RECOMMENDATIONS, IT MUST BE A
LITTLE FRUSTRATING.
THE RECOMMENDATIONS AROUND
CHILDHOOD MENTAL HEALTH, FOR
EXAMPLE, THEY ALL MAKE A LOT OF
SENSE BUT JUST PUTTING THEM OUT
THERE DOESN'T NECESSARILY A --
ACHIEVE ANY OF THEM AND BEYOND
JUST SAYING THIS IS WHAT WE
SHOULD DO, TAKE STEPS TO ACHIEVE
THE RECOMMENDATIONS?
>> THAT'S THE UNIQUE NATURE OF
OUR OFFICE AS THE SURGEON
GENERAL AS AMERICA'S DOCTOR, WE
DON'T HAVE ANY PROGRAMMATIC
OVERSIGHT OR OVERSEE
IMPLEMENTATION.
SO NONE OF THIS IS UNDER YOU OUR
CONTROL TO DRIVE THE AND THE WAY
WE SE THE PURPOSE OF THE
ADVISORY AS A CATALYST IS TO
SAY, FROM THE PERSPECTIVE OF THE
SURGEON GENERAL THERE'S ROBUST
AND SCIENTIFIC EVIDENCE TO
SUPPORT MOVING IN THE DIRECTION
TO DRIVE THESE KINDS OF
RECOMMENDATIONS AND CHANGES AND
SENSE OF EMPOWERMENT FOR
DIFFERENT STAKEHOLDERS OF WHAT
THEY CAN DO AND HOW WE DRIVE
THAT THERE'S DEFINITELY
INTERAGENCY CONVERSATION HAPPEN
AT THE U.S. GOVERNMENT LEVEL.
THERE'S A LOT OF CONVERSATION
HAPPENING NOW OR HOW CAN WE MOVE
ON SOME OF THE RECOMMENDATIONS.
AND WE CAN DO A SUMMIT OR DO WE
PUT COMMITMENTS AROUND SOME OF
THESE RECOMMENDATIONS ALL UNDER
DISCUSSION AND CONVERSATION
HISTORICALLY THE OFFICE IS QUITE
SMALL.
AND THE ISSUES ARE NOT SIMPLE
AND COMPLEX AND REAR ADMIRAL
HINTON WOULD LOVE TO JOIN.
>> THANK YOU FOR YOUR
SENTIMENTS.
IT'S THROUGH ENGAGEMENT
CONVERSATIONS AND COMMUNICATION
AND COMPONENTS WHERE WE DO
PROVIDE INFORMATION BASED OFF
ASSESSMENT AND CONVERSATIONS
WE'RE HAVING WITH THE INNER
AGENCY PARTNERS AND FOR THOSE
OUT IN THE FIELD AND THE LIKE.
AND THAT'S TRYING TO SEE IF THE
INFORMATION THAT WE SHARED OR
PUT OUT FOR CONVERSATIONS FOR
CONSIDERATIONS, FOR PEOPLE TO
EMPLOY OF WORK EMPLOYMENT AND
COMMUNITY ARE WORKING AND ONE
THING THAT IS BENEFICIAL ABOUT
COMING TO AN ORGANIZATIONAL BODY
LIKE YOURSELVES FILLED WITH
EXPERTS AND OTHER EXPERTS AS
WELL IS GETTING THAT FEEDBACK
AND UNDERSTANDING IF THESE
ADVISORIES WE'RE PUTTING OUT IF
THEY ARE BENEFICIAL IN LEARNING
FROM WHAT IS AND WHAT ISN'T AND
WHAT WE CAN BEST DO IN GATHERING
DATA TO SHOW THEIR IMPACT AND A
NUMBER OF THINGS WE HAVE ONGOING
EXTERNALLY FOCUSSED WE'RE ALSO
TAKING AND BUILDING INTERNALLY
SEEING HOW TO DEPLOY THESE
THINGS AND TRYING TO CAPTURE
DATA FROM OUR HHS COUNTERPARTS
AND THAT INCLUDES OUR SERVICE AS
WE HAVE FOLKS THAT HAVE BEEN
DEPLOYING AT AN INCREDIBLE
UNPRECEDENTED RATE OVER THE
YEARS AND LOOKING AT THEIR
HEALTH AND WELL BEING AND WHAT
MEASURES FROM THIS AND WE'LL
HAVE PUT IN PLACE AND GET FROM
THAT OVER THE NEXT YEAR OR SO SO
THANK YOU FOR THE QUESTION AND
LOOK FORWARD TO PROVIDING
UPDATES TO YOU IN THE FUTURE AND
RECEIVING INPUT FROM YOU HOUN TO
BEST MEASURE THAT IMPACT.
THANK YOU.
>> WE'LL NOW MOVE ON TO THE
SOMEWHAT HOUSEKEEPING BUT
OFFICIAL BUSINESS.
WE HAVE THE MINUTES FROM THE
SEPTEMBER MEETING TO APPROVE.
IF THERE ARE ANY CHANGES,
ADDITIONS TO THE MINUTES PLEASE
MENTION OTHERWISE I'LL ENTERTAIN
A MOTION TO APPROVE THE MINUTES
AS THEY ARE.
>> BAKKEN, I MOVE TO APPROVE THE
MINUTES.
ALL IN FAVOR OF APPROVING THE
SEPTEMBER MINUTES PLEASE
INDICATE SO.
ANYBODY OPPOSED?
SEEING NONE THE MINUTES ARE
APPROVED.
ALSO, BE AWARE OF FUTURE MEETING
DATES.
THERE'S IS AN ADDITIONAL WINTER
OF 2024 BOARD OF REEGE EREGENTS
PROPOSED FOR THE CALENDAR AND
THIS GROUP CAN VOICE OBJECTION
TO THAT OR CAN APPROVE IT.
I'M NOT SEEING ANY OBJECTIONS TO
THAT AT THIS POINT SO WE WILL
CONSIDER THAT PROPOSED DATA
PROVED AND ADDED TO THE BOARD OF
REGENTS CALENDAR.
ALSO BE AWARE OF THE FUTURE
MEETING DATES FOR MEDICAL
LIBRARY ASSOCIATION THE AAMC AND
AMIA MEETINGS AND THE ONE IN
ORIOLES -- NEW ORLEANS AND IN
DECEMBER.
WITH THAT WE CAN MOVE ON TO THE
DIRECTOR'S REPORT HOWEVER, I
WANT TO PUT IN A BRIEF PROVISO
THAT DURING PATTI'S
PRESENTATION, IT'S LIKELY THAT
THE MEDIA OPERATIONS WILL LAUNCH
THE BREAKOUT ROOMS FOR OUR
WORKING GROUP SESSIONS.
YOU'LL SEE A BREAKOUT ROOM POP
UP ON YOUR SCREEN.
PLEASE WAIT TO JOIN YOUR ROOM IN
UNLESS YOU'RE A PRESENTER AND
11:15 I'LL MAKE THE ANNOUNCEMENT
IT'S TIME TO MOVE INTO THE
WORKING GROUP BREAKOUT ROOMS.
SO WITH THAT, PATTI, I'LL TURN
IT OVER TO YOU FOR YOUR REPORT.
>> THANK YOU VERY MUCH, NEIL.
I APPRECIATE THAT VERY MUCH.
WHILE MY SLIDES ARE COMING UP
LET ME EXTEND MY WELCOME TO THE
75 MEMBERS OF OUR STAFF AND
BOARD OF REGENTS HERE ON THE
ZOOM WITH US AND TO THE
ADDITIONAL 125 PEOPLE ON THE
VIDEO CAST.
I FIND MYSELF AT A POINT WHERE
WE WOULD NOT EXPECT TO BE THIS
MANY YEARS LATER STILL BEING
BACK AT EXTENDED TELEWORK.
WE LOOK FORWARD TO SEEING ALL OF
YOU.
I HOPE YOU REALIZE WE'RE TRYING
TO MOVE AS QUICKLY AS POSSIBLE
AT THE NIH TO BRING PEOPLE BACK
TO THE WORKPLACE AND TO BE ABLE
TO MEET IN PERSON.
WE ANTICIPATE THAT THE BOARD OF
REGENTS MEETING IN MAY WILL BE
DONE REMOTELY THIS YEAR AND HOPE
TOGETHER FOR AT LEAST A HYBRID
STRUCTURED MEETING IN SEPTEMBER
BUT WE'LL KEEP YOU POSTED ON
THAT.
I ALSO WANT TO GIVE MY THANKS TO
REAR ADMIRAL HINTON AND DR. AL
SAMARAI.
THEIR MATERIAL WAS PARTICULARLY
PERRINENT AND LOOKING FORWARD TO
THE INFORMATION THIS AFTERNOON
ON HOW DOCUMENTATION MAY BE
REDUCED TO REDUCE CLINICIAN
BURNOUT.
WE HAVE LOTS OF THINGS TO DO
TODAY AND AN APPRECIATE YOUR
ATTENTION AND THE TIME YOU'RE
TAKE FROM EFFORTS AND THE
MEETING AT 11:15 AND WE'LL HAVE
A PRESENTATION AT 1:00 THIS
AFTER -- OR 1:15 FROM OUR
COUNCIL THAT ADDRESSES
DIVERSITY, EQUITY AND INCLUSION
AND ACCESSIBILITY.
WE'RE COMMITTED TO SUPPORTING
THE NIH'S DIRECTIONS IN THIS
AREA.
YOU'LL HEAR AND WE LOOK FORWARD
TO YOUR GUIDANCE IN HOW WE'RE
APPROACHING THIS AND WILL HAVE A
MEETING LATE FOR CONCEPT
CLEARANCE FOR INFORMATION IN THE
EXTRAMURAL TERMS.
I WANT TO ADD MY WELCOME TO
DOCTORS SANINO AND ABRIAMI AND
WE LOOK FORWARD TO HAVING THE
SUPPORT AND WITH CLINICAL CARE
AND REACHING INTO COMMUNITIES.
I'M GRATEFUL FOR THE QUALITY AND
INTEGRATE OF OUR BOARD.
WE'VE HAD A LEADERSHIP
TRANSITION.
DR. FRANCIS COLLINS STEPPED DOWN
AT 12 YEARS AS DIRECTOR.
DR. LARRY TABAK A GREATER
SUPPORTER OF NATIONAL LIBRARY OF
MEDICINE WHO WAS OUR PRINCIPLE
DEPUTY DIRECTOR HAS BECOME THE
ACTING DIRECTOR.
THIS IS THE SECOND TIME HE'S
BEEN THE ACTING NIH DIRECTOR SO
HE'S SERVED AND BEEN TERRIFIC IN
SUPPORTING THE TRANSITIONS.
DR. TARA SCHWETZ IS NOW AR
ACTING PRINCIPLE DEPUTY AND WAS
THE ACTING OF NINR AND IS A
BIOPHYSICISTS AND HAS BEEN
OVERSEE THE RAD X PROGRAM.
SHE WAS ON DETAIL HELPING SAME
THE ARPA-H PROGRAM AND WE HEARD
SOME OF HER MATERIALS IN THE
LAST MEETING.
I REALIZED AS I WAS PREPARING
TODAY I DON'T OFTEN INTRODUCE
YOU TO THE NLM LEADERSHIP TEAM.
ON THE SCREEN I HAVE OUR NLM
LEADERSHIP TEAM AND SOME ARE IN
THE ROOM WITH ME AS AN INDICATED
EARLIER ALL ARE EITHER ON THE
PHONE OR HERE IN THE BUILDING.
DIANNE BABB SKI AND DR.
DRDR.
DRDR. BODE
DR. BODENREEDER HAS DIN A
TERRIFIC JOB AND TODD DANIELSON
IS OUR EXECUTIVE OFFICER AND
VALERIE FLORENCE WAS OUR
DIRECTOR FOR EXTRAMURAL TERMS
BUT IS NOW OR SCIENTIFIC
DIRECTOR AND OVERSEES THE
INTRAMURAL RESEARCH PROGRAM AND
DR. RICHARD PALMER IS OUR ACTING
DIRECTOR OF EXTRAMURAL TERMS AND
YOU'LL HEAR FROM HIM IN THE
EXTRAMURAL PROGRAM ACTIVITIES
LATER.
DR. D'SOUZA IS IN OUR CIO AND WE
HAVE STEVE SHERRY AND
DR. ESTEBAN HEAD OF OUR POLICY
DEVELOPMENT OFFICE.
WE HAVE A TERRIFIC LEADERSHIP
TEAM AND HAVE BEEN MEETING
REMOTELY, PHYSICALLY AND
TOGETHER NOW AND EVERY MONDAY
AND WEDNESDAY WE GET TOGETHER TO
KEEP NLM MOVING FORWARD.
YOU'LL RECALL OUR STRATEGIC PLAN
HAS THE PILLARS TO ACCELERATE
DATA DRIVEN RESEARCH AND
RESEARCH AND HEALTH.
WE CONTINUE TO MAKE SIGNIFICANT
PROGRESS ON ALL PILLARS AND I'M
GRATEFUL FOR THE EFFORTS OF THE
NATIONAL LIBRARY OF MEDICINE
STAFF AND PARTNERS.
IN THE LAST TWO YEARS THE NLM
HAS BEEN CALLED ON A LOT TO
PROVIDE RESPONSE AND SUPPORT TO
THE NIH'S COVID PANDEMIC
RESPONSE.
WE'VE DONE SEVERAL THINGS I WANT
TO CALL TO YOUR ATTENTION.
LIBRARY OPERATIONS HAS WORKED
HARD TO IMPROVE DISCOVERABILITY
AND ACCESS TO THE LITERATURE AND
ADDED COVID-19 VERSION TO THE
2022 VERSION OF MESH AND NEW
CONCEPT RECORDS WHICH ARE
ESSENTIAL FOR UNDERSTANDING BOTH
THERAPEUTICS AS WELL AS THE
CONSEQUENCES OF THE INFECTION.
WE HAVE ALSO STARTED THE
REQUESTS AND FILLED ABOUT 6,000
REQUESTS IN THE FALL AND
CONTINUE TO FIND WAYS TO MEET
THE NEEDS OF THE COUNTRY.
WE ENCOURAGE THOSE WHO HAVE
NEEDS TO WORK WITH OUR NETWORK
OF THE NATIONAL LIBRARY OF
MEDICINE TO FULFILL THE REQUEST
AND REACH OUT TO US IF THEY'RE
UNABLE TO.
AND WITHIN THE NCBI TEAM WE HAD
WORK WITH SEQUENCE BASED PUBLIC
HEALTH.
TEAM SIMPLIFIED THE SARS COV2
SUBMISSION PROCESS TO GEN BANK
AND THE ARCHIVE.
THIS IS CRITICAL BECAUSE HAVING
OUR DEPOSITS TO USE THE
INFORMATION QUICKLY AND EASILY
MAKES IT POSSIBLE TO BE EXPOSING
THE VIRUS QUICKLY FOR USE BY
OTHERS.
THEY UPDATE THE PROCESS FOR
REMOVING FAILED SUBMISSION AND
HAVE A TOOL WE SHARE WITH THE
PUBLIC AND IMPROVE METADATA.
AND THEY'VE DEVELOPED AN
UNDERSTANDING OF MULTIPLE
INVERSIONS IN THE SPIKE PROTEIN
OF THE SARS COV2 INCLUDING SOME
THAT CAN CAUSE AN ESCAPE FROM
THE NEUTRALIZING ANTIBODIES
WHICH IS IMPORTANT FOR DESIGNING
VACCINES AN ANTIVIRALS AND
MEMBERS OF OUR STAFF HAVE BEEN
HELPING TO GUIDE THE RADX
PROGRAM AND RECOVER AND RESEARCH
IN COVID TO ENHANCE RECOVERY
INITIATIVES.
HAVING OUR STAFF BE ABLE TO WORK
WITH THE PROGRAM ENSURES OUR
RESOURCES ARE AVAILABLE QUICKLY
AND AS NEEDED AND ALSO ENSURES
THE TALENTS OF OUR STAFF BECOME
ACCESSIBLE TO THE NIH.
WE CONTINUE TO WORK ON I AM
PROVING OUR OPERATIONS.
WE SUPPORTED THE LAUNCH OF THE
NIH REPOSITORY ECO SYSTEM
INITIATIVE.
THIS IS CRITICAL FOR THE DATA
MANAGEMENT AND SHARING PLANS NOW
GOING TO BE REQUIRED AS OF
JANUARY '23 HAVING A PLACE TO
DEPOSIT DATA WILL BE ESSENTIAL.
WE HAVE BEEN BUILDING NEW TOOLS
TO SEARCH LARGE DATABASES AND
WE'RE DOING THIS IN CLEVER
BINGESES.
IN THE FALL OF THIS YEAR IN
COMBINATION WITH THE OFFICE OF
THE DATA SCIENCE STRATEGY WE
HOSTED A CODATHON AND THEY GIVE
US A WAY TO GET CREATIVE NEW
IDEAS IN OUR OPERATIONS.
THIS ONE BROUGHT FOUR NEW
SOLUTIONS WE'RE EVALUATING TO
SEE IF THEY MAY SCALE AND BE
USEFUL NOR PROGRAMS OVERALL.
THE NCBI HAD COME UP WITH A
STRATEGY TO EXPAND ADDRESSES AND
HAS OVER 2 BILLION ACCESSIBLE
OBJECTS SO WE NEEDED TO MOVE TO
A 64 BIT SCREEN TO KEEP ON TRACK
OF EVERYTHING ON HAND.
I'M PROUD WE HAVE
IMPLEMENTATIONS OF IMPROVEMENTS
IN OUR SYSTEMS WE HAVE WORKED TO
UNDERSTAND BEYOND GENES.
UNDERSTANDING MORE OF WHAT IS IN
THE GENOME AND THE FUNCTIONAL
ELEMENT RESOURCES THAT IS USED
AS FUNCTIONAL ELEMENTS AND
WHAT'S IMPORTANT IN THIS OF TIME
IS THAT WE PUBLISHED A PAPER
THAT EXPLAINS HOW THIS
ANNOTATION OCCURS AND HOW WE
DISCOVER THE SECTIONS AND ALLOWS
PARTNERS AND SCIENTISTS AROUND
THE WORLD TO USE OUR RESOURCES
AND STRATEGIES INTO THEIR OWN
OPERATIONS.
WE'VE BEEN WORKING TO MAKE OUR
RESOURCES MORE ACCESSIBLE IN A
MORE PERMANENT WAY AND MOVED A
SITE FROM A STAND ALONE WEBSITE
TO THE CLOUD.
THIS ALLOWS FOR EFFICIENCY AND
FOR REDUNDANCY ENSURING
ACCESSIBILITY OF RESOURCES.
NOW, SPECIFICALLY WITHIN THE
NATIONAL LIBRARY OF MEDICINE
PROGRAM INTERNALLY THE
OPERATIONS TEAM HAS ESTABLISHED
A LONG RANGE PLAN TO TAKE US
INTO OUR THIRD CENTURY AND
ORGANIZE TO STAY TRUE TO OUR
BASE MISSION OF ACQUIRING,
ORGANIZING AND DISSEMINATING AND
PRESERVING THE LITERATURE IN
WAYS THAT ARE EFFICIENT AND MAKE
THE BEST USE OF OUR TALENT.
WE HAVE EXPENDED THE AUTOMATED
INDEX INITIATIVE TO INCLUDE OVER
70% OF OUR JOURNALS AND 57% OF
ALL COMPLETED ARTICLES.
THIS PROCESS OF AUTOMATED
INDEXING ALLOWS US TO MAKE QUICK
ACCESS TO THE LITERATURE BUT
ALSO PRESERVES THE SCARCE HUMAN
TALENT WE HAVE FOR INDEXING.
AND FOR THOSE JOURNALS THAT
REQUIRE SPECIFIC ATTENTION AND
INTERPRETATION BY AN INDIVIDUAL.
IN THE EXTRAMURAL PROGRAMS AREA
WE APPROVED 18 PRE-AND
POST-DOCTORAL TRAINING AWARDS
AND THOUGH WE'RE UNDER A
CONTINUING RESOLUTION WE AWARDED
14 NEW PROJECTS.
THIS IS ASTOUNDING AND WE'RE
PLEASED TO HAVE THE START UP.
WITHIN THE INTRAMURAL PROGRAM,
VIRGINIA MIR AND VALERIE FARNS
HAVE OUTREACH TO LOCAL HBCUs AND
BRING NEW KINDS OF TALENT INTO
THE BIOINFORMATICS WORKFORCE AND
THERE WAS WORK FOR THE CHALLENGE
ON LARGE SEMANTIC TEXT INDEXING
AND THIS IS HOW THEY TAKE TOOLS
AND SHOW THEM TO THE PUBLIC AND
PROVIDE A ROBUST TEST OF THE
TOOLS.
I WANT TO TURN TO SCIENCE.
I WANT YOU TO THINK ABOUT WHAT
CAUSES APOPTOSIS OR CELL DEATH?
IT TURNS OUT FROM A GROUP THEY
FIGURED OUT IT COMES DOWN TO THE
WAYS PROTEINS RESPOND TO
INVADERS.
WAY AN ORGANISM INVADES THE BODY
AND ASSIMILATES A RESPONSE BY
PROTEINS AND THIS IS PRESERVED
ACROSS MANY SPECIES.
WE'LL LOOK AT A BRIEF VIDEO TO
UNDERSTAND MORE ABOUT THE
RESEARCH.
THIS VIDEO WAS PRODUCED BY THE
OCPL.
MAY I HAVE THE VIDEO, PLEASE.
>> EARLY IN MY LIFE I WANTED TO
BE A PALEONTOLOGY AND WILL THAT
LED KNOW MOLECULAR BIOLOGY.
ON ONE LEVEL I COULD SAY I WISH
TO UNDERSTAND THE PROTEIN
UNIVERSE.
THEY CAN BE DIVIDED INTO
EVOLUTIONARY UNITS.
THERE'S A PART OF THE PROTEIN
PRESERVED OVER EVOLUTION BECAUSE
NATURAL SELECTION IS MAINTAINING
THAT PART FOR SOME REASON.
AND ONE REALIZATION WHICH DAWNED
ON US STARTED AROUND THE EARLY
'90s AND THIS WAS A PROFOUND
REALIZATION FOR ALL BIOLOGY
THERE'S LITERALLY A SMALL NUMBER
OF THESE EVOLUTIONARY UNITS OF
PROTEINS WHICH CONSTITUTE THE
ENTIRE PROTEIN UNIVERSE OF
ORGANISMS ACROSS THE TREE OF
LIFE.
IF WE CAN UNDERSTAND THE
FUNCTIONS OF THESE UNITS THEN
THAT GOES ALONG WAY TOWARDS
UNDERSTANDING ORGANISMS AND
GIVEN THERE'S MANY GAPS IN OUR
UNDERSTANDING OF WHAT ORGANISMS
DO, ONE WAY TO GET AT IT IS TO
FIRST FIND THEY'LL DOMAINS.
THE SECOND IS PREDICTING
FUNCTIONS.
THE FIRST PHASE OF MY RESEARCH
WE CAPTURED MOST THE LOW-HANGING
FRUIT WHICH IS THE BIG FAMILIES
CONSERVED ACROSS ALL ORGANISM.
NOW WE'RE MOVING ON TO THE MORE
DIFFICULT TERRAIN IT ALSO HOLDS
A LOT OF PROMISE BECAUSE MANY
UNUNDERSTOOD FUNCTION HIDING IN
THAT TERRAIN AND GIVES OFFSHOOTS
LIKE PREDICTION ENZYMES, THE
CRISPR AND MODIFICATION SYSTEMS
ALL HAVE BECOME POPULAR
RE-AGENTS.
NLM IS THE LEADER IN THE
ANALYSIS OF PROTEIN SEQUENCES
AND PROTEIN STRUCTURES AND
INFERRING EVOLUTION FROM THESE
BITS OF INFORMATION AND IT'S
BEEN A LONG STANDING INTEREST OF
MINE.
IT'S THE PLACE TO BE.
>> THESE AND OTHER VIDEOS ARE
AVAILABLE ON THE NLM YOUTUBE
CHANNEL.
I HOPE YOU'LL GET A CHANCE TO
SEE SOME OF THOSE.
LET ME TALK A LITTLE BIT ABOUT
WHAT'S HAPPENING IN THE BUILDING
NOW.
WE'RE CONTINUING TO MAKE
PROGRESS WITH THE RENOVATION.
THE THREE PICTURES SHOW
DIFFERENT PERSPECTIVES.
THE FAR LEFT AND FAR RIGHT ARE
THE FIRST FOUR RENOVATIONS BEING
DONE.
NEW WALLS CONSTRUCTED AROUND THE
ROTUNDA AND FUTURE CONFERENCE
ROOM SPACES BEING PUT IN PLACE
AND YOU SEE THE UTILITY BUILDING
AND TUNNEL.
WHAT YOU'RE LOOK AT IS RIGHT
OUTSIDE THE TALL BUILDING THE
WORCESTER HILL BUILDING IS WHERE
WE'LL HAVE REDUNDANT POWER AND
THE ABILITY TO KEEP SYSTEMS COOL
AND KEEP OUR WHOLE DATA CENTER
MORE ROBUST.
WE'RE VERY PLEASED ABOUT THIS.
IN SIDE BUILDING 38 THERE'LL BE
A NEW MEZZANINE SUITE AND THE
FIRST FLOOR WILL BE A SHARED
READING ROOM SPACE AND SOME
TRAINING SPACE.
AND YOU'LL SEE ON THE LOWER
RIGHT HAND CORNER WE'RE
PREPARING THE OUTSIDE OF THE
BUILDING TOO.
THIS IS THE NEW HAND RAILS UP
THE MAIN ENTRANCE TO THE NEW
BUILDING AND LOOKING FORWARD TO
SHARING THIS WITH I -- YOU.
WE'RE UNDER A CONTINUING
RESOLUTION WE'RE HOPING TODAY IT
WILL BE EXTENDED INTO MARCH BUT
WE DO HEAR THAT THERE IS
CONTINUED WORK ON DEVELOPING AN
OMNIBUS BUDGET FOR US.
YOU'LL NOTICE THAT OUR BUDGET
HAS BEEN INCREASING OVER THE
YEARS.
WHAT WE ARE ANTICIPATING FROM
THE PRESIDENT'S AUTHORITY IN THE
HOUSE MARK IS ABOUT 487, WE MAY
END UP CLOSER TO 475 WE HOPE TO
CONTINUE TO SUPPORT OUR
RESOURCE.
ONE OF THE CHALLENGES HAS BEEN A
MULTI-YEAR BUILDING PLAN LIKE
RENOVATIONS HAS REQUIRED US TO
BE CAREFUL STEWARDS OF OUR
ANNUAL BUDGET AND OUR
PARTNERSHIPS WITH THE NIH AND
OFFICE OF RESEARCH FACILITIES
HAS BEEN IMPORTANT IN THIS
PROCESS.
I WANT TO TAKE YOU NOW TO
PERSONNEL UPDATES.
I NEED TO BEGIN WITH SOME
SADNESS IN MEMORIAM WE LOST FIVE
COLLABORATORS AND FORMER STAFF
MEMBERS SINCE OUR LAST BOARD
MEETING.
I'D LIKE TO TAKE A MOMENT TO
JUST REMEMBER THE CONTRIBUTIONS
OF THESE PEOPLE TO THE BOARD OF
REGENTS, THE NATIONAL LIBRARY OF
MEDICINE AND TO SOCIETY AS A
WHOLE.
THANK YOU.
WE HONOR DAVID KENTON, FRANCIS
SPINS NA AND PATRICIA AND EDWARD
HUTH AND WE HAVE POSITIVE
CHANGES.
OUR LONG STANDING SCIENTISTS IN
OUR LIST TER HILL PROGRAM HAVE
COMPETED AS AN INVESTIGATOR TO
OUR INTRAMURAL RESEARCH PROGRAM
AND IT'S A GREAT ACCOMPLISHMENT
AND VALUE.
AND WE HAD A RETIREMENT AND HE'S
OFF TO A NEW LIFE WITHOUT US.
WE'RE ALSO IN THE PROCESS OF
RE-IMAGINING THE LEADERSHIP
DIRECTIONS NEEDED TO TAKE THE
NATIONAL LIBRARY OF MEDICINE
INTO THE THIRD CENTURY.
YOU MAY RECALL NLM HAS ALWAYS
BEEN SUPPORTED BY TWO DEPUTY
DIRECTORS.
WE'LL CONTINUE TO BE SUPPORT TWO
DEPUTY DIRECTORS AND COME WITH
NEW POSITIONS.
GARY SHEEHAN IS ELEVATING THE
IDEAS OF POLICY TO THE MOST
SENIOR EXECUTIVE LEVEL OF THE
INSTITUTE.
AND WE ALSO WILL BE APPOINTING
AND SEARCHING FOR APPOINTING A
DEPUTY DIRECTOR FOR OPERATIONS
AND INNOVATIONS.
WE EXPECT THAT SEARCH WILL BEGIN
IN MAY OF '22.
WE'RE IN THE PROCESS OF
RECRUITING A NEW SCIENTIFIC
DIRECTOR, A SINGLE SCIENTIFIC
DIRECTOR TO UNIFY OUR TERMS.
THE SHORT LIST WAS PRESENTED TO
ME LAST WEEK AND THE INTERVIEWS
ARE BEGINNING THIS WEEK AND
WE'RE EXCITED ABOUT THE CAND
DATZ -- CANDIDATES AND WE HAVE
LAUNCHED THE SEARCH FOR A
PERMANENT DIRECTOR FOR THE NCBI.
I CHARGE THE SEARCH COMMITTEE ON
MONDAY AND ANTICIPATE THE
APPOINTMENT TO BE MADE BY MAY
'22 AND WE HAVE A NATIONAL
SEARCH AND INTERESTED IN YOUR
IDEAS ON WHO CAN LEAD AND WE
HAVE EXTERNAL CANDIDATES AN
THERE'S A LOT OF NIH INTEREST SO
WE'LL HAVE INTERNAL AND EXTERNAL
CANDIDATES AND WE ARE
ANTICIPATING LAUNCH SEARCH FOR
THE DIRECTOR OF THE LISTER HILL
CENTER FOR COMMUNICATIONS LATER
THIS YEAR.
I WANT TO SPEAK TO WORK WE'VE
ASKED THE BOARD TO TAKE ON.
THERE'LL BE AN ACTIVITY FOR THE
BOARD EVALUATE ITS CONTRIBUTIONS
AND THE WAY WE'RE STRUCTURED TO
MAKE SURE WE'RE MAKING THE BEST
USE OF YOUR TIME.
WE HAVE REALLY VALUED HAVING
WORKING GROUPS.
THE CLINICAL TRIALS WORKING
GROUP AND THE POLICY AND
COMPARED GENOMICS RESOURCE
OVERSIGHT HAVE BEEN IMPORTANT TO
US AND WE'D LIKE THEM TO
CONTINUE BUT WE'D LIKE TO HEAR
YOU FROM AND WE HAVE THE KIND OF
INPUT YOU NEED.
WE LOOK FORWARD TO THE RESULTS
OF YOUR CONVERSATION.
WE WILL BE AT THE NLM STAFF
PRESENCE SO THANK YOU TO THOSE
WHO MADE ADJUSTMENTS TO YOUR
SCHEDULE.
LET ME TURN TO A POLICY UPDATE
FROM THERESA.
>> THANK YOU AND GOOD MORNING.
THIS MORNING I WANTED TO SHARE
SOME BRIEF LEGISLATIVE AND
POLICY UPDATES.
AS ALWAYS I ENCOURAGE YOU TO
REVIEW THE WRITTEN UPDATE FOR
DETAILS AND LINKS FOR MORE
INFORMATION.
ON THE LEGISLATIVE FRONT, WE ARE
PAYING ATTENTION TO THE
APPROPRIATIONS PROCESS AS PATTI
MENTIONED WE'RE CURRENTLY IN A
CONTINUING RESOLUTION WHICH
FUNDS THE FEDERAL GOVERNMENT AT
FISCAL YEAR 2021 LEVELS THROUGH
FEBRUARY 18.
PATTI MENTIONED YESTERDAY THE
HOUSE INTRODUCED HR6617 A
CONTINUING RESOLUTION THAT WOULD
FUND THE GOVERNMENT THROUGH
MARCH 11 AND A VOTE IS SCHEDULED
FOR LATER TODAY.
IF THE RESOLUTION PASSES THE
HOUSE THE BILL WOULD THEN MOVE
TO THE SENATE FOR CONSIDERATION.
IN ADDITION TO THAT I WANTED TO
BRIEFLY MENTION TO OTHER
LEGISLATIVE ACTIVITIES OF
INTEREST.
THE FIRST ONE IS THE CURES 2.0
ACT WHICH WAS INTRODUCED IN THE
HOUSE ON NOVEMBER 17 OF 2021.
IT FOCUSES ON THE DELIVERY OF
NEW DRUGS AND TREATMENTS AND THE
CURES ACT FOCUSSED ON
ACCELERATING RESEARCH AND
DEVELOPMENT OF THE DRUGS AND
TREATMENT AND HAS FIVE SECTIONS.
ONE OF THEM IN PARTICULAR I
WANTED TO MENTION FOCUSES ON
PATIENTS AND CAREGIVERS
INCLUDING AN EDUCATIONAL
PROGRAM, DIVERSIFYING CLINICAL
TRIALS AND IMPROVING THE
USABILITY OF CLINICALTRIALS.gov.
IN ADDITION TO THAT, LATE LAST
MONTH, SENATORS MURRAY AND BURR
RELEASED A DISCUSSION DRAFT OF
WHAT'S CALLED THE PREVENT
PANDEMICS ACT.
AS DESCRIBED BY THEM, THE BILL
IS FOCUSSED ON STRENGTHENING THE
NATION'S PUBLIC HEALTH AND
MEDICAL PREPAREDNESS AND
RESPONSE SYSTEMS IN THE WAKE OF
THE COVID-19 PANDEMIC.
THE BILL INCLUDES FIVE SECTIONS.
ONE OF WHICH FOCUSES ON PUBLIC
HEALTH PREPAREDNESS AND RESPONSE
CAPACITY, INCLUDING IMPROVING
PUBLIC HEALTH DATA SEQUENCE FOR
SURVEILLANCE AND THE USE OF
GENOMIC DATA.
FEEDBACK ON THE DISCUSSION DRAFT
BILL WAS DUE LAST FRIDAY SO
WE'LL BE PAYING ATTENTION WHAT
HAPPENS TO IT MOVING FORWARD.
IN ADDITION I WANTED TO PROVIDE
SOME POLICY UPDATES ON
ACTIVITIES OF INTEREST TO NIH
AND NLM.
FIRST OFF I WANTED TO MENTION
THAT LAST MONTH THE SCIENTIFIC
INTEGRATE TASK FORCE REPORT WAS
RELEASED.
YOU MAY RECALL IT PROVIDED
UPDATES ON THE WORK IN MAY AND
SEPTEMBER OF LAST WEEK THE
REPORT IDENTIFIES DIRECTIONS FOR
STRENGTHENING FEDERAL POLICIES
AND PRACTICES.
THIS INCLUDES STRENGTHENING
EXISTING POLICIES TO BETTER HAVE
AN INFLUENCE IN THE
COMMUNICATION AND USE OF SCIENCE
AS WELL AS PAYING ATTENTION TO
OTHER POLICY AREAS SUCH AS
PROMOTING SAFE EQUITABLE
WORKPLACES FREE FROM HARASSMENT
AND DISCRIMINATION.
I ALSO WANTED TO BRING UP THE
NIH DATA MANAGEMENT AND SHARING
POLICY AS YOU ARE AWARE, THIS
POLICY WILL BECOME EFFECTIVE IN
A LITTLE LESS THAN A YEAR AND
NIH IS INTENDED TO PROVIDE
GUIDANCE AND NLM IS A PART OF
THAT PROCESS.
WE'RE EXPLORING WAYS IN WHICH WE
CAN ASSIST NIH WITH OUTREACH AND
TRAINING ON THE POLICY BEFORE IT
TAKES EFFECT.
THE OTHER POLICY I WANTED TO
BRING TO YOUR ATTENTION IS THE
NIH GENOMIC SHARING POLICY.
AS YOU ARE AWARE NOVEMBER 30 OF
LAST YEAR, NIH PUBLISHED A
REQUEST FOR INFORMATION SEEKING
PUBLIC COMMENTS ON POTENTIAL
REVISIONS TO THE POLICY TO KEEP
PACE WITH EVOLVING SCIENTIFIC
OPPORTUNITIES AS WELL AS ALIGN
WITH THE NIH DATA SHARING AND
MANAGEMENT POLICY.
COMMENTS ON THIS RFI ARE DUE BY
THE END OF THIS MONTH FEBRUARY
28 AND INVITE YOU ALL TO SHARE
THE REQUEST FOR INFORMATION WITH
RELEVANT STAKEHOLDERS TO SUBMIT
PUBLIC COMMENTS.
WE ALSO ENCOURAGE YOU TO READ A
BLOG POST FROM A COLLEAGUE FROM
THE OFFICE OF SCIENCE POLICY.
IN ADDITION THERE'S TWO SISTER
AGENCIES WITHIN THE DEPARTMENT
THAT HAVE BEEN LEADING RELEVANT
POLICY ACTIVITIES.
THE FOOD AND DRUG ADMINISTRATION
CONTINUES TO ISSUE SUB
REGULATORY GUIDANCE FOCUSSED ON
EITHER DIGITAL HEALTH OR USE OF
REAL WORLD DATA AND CLINICAL
TRIALS.
IN DECEMBER THEY PUBLISHED DRAFT
GUIDANCE ON THE USE OF DIGITAL
HEALTH TECHNOLOGIES FOR REMOTE
DATA COLLECTION AND THIS DRAFT
GUIDANCE IS OUT FOR PUBLIC
COMMENT DUE IN JANUARY 22.
AND IT THERE WAS A DRAFT VERSION
3 OF THE U.S. CORPS DATA FOR
INTRAOPERABILITY STANDARD.
THIS SAY STANDARDIZED SET OF
HEALTH DATA CLASSES AND ELEMENTS
MEANT TO HELP EXCHANGE AND ONC
IS PROPOSING TWO NEW DATA
CLASSES AND 20 NEW DATA ELEMENTS
THIS INCLUDES A NEW DATA
ELEMENTS UNDER THE LABORATORY
DATA CLASS WHICH INCLUDES A
SUBMISSION IN COORDINATION WITH
THE NATIONAL EYE INSTITUTE.
COMMENTS ON THIS DRAFT ARE DUE
BY APRIL 30 AND ONC PLANS TO
ISSUE A VERSION IN JULY.
WITH THAT OVER TO PATTI.
>> THANK YOU, THERESA.
WE'LL HAVE ABOUT 10 MINUTES FOR
QUESTIONS AND COMMENTS AND WHILE
THAT'S HAPPENING I'LL REMIND YOU
THE BREAKOUT GROUPS STRUCTURE IS
ON PAGE 26 OF YOUR E BOARD BOOK
AND ON THE SCREEN HERE.
LATE ME TURN BACK TO NEIL AND
SEE IF THERE'S QUESTIONS FROM
THE AUDIENCE.
>> THANK YOU, PATTI.
I PARTICULARLY APPRECIATE YOUR
INTRODUCING THE SENIOR
LEADERSHIP TEAM.
ONE OF THE THINGS WE MISS
THROUGH REMOTE MEETING IS NOT
ONLY INTERACTION WITH EACH
OTHERS AS MEMBERS BUT WITH THE
MEMBERS OF YOUR TEAM AND IT'S
OUR OPPORTUNITY TO MIX WITH THEM
AND LEARN BY WHAT A GREAT GROUP
IT IS.
I THANK YOU FOR TAKING THE TIME
TO DO THAT AND THIS IS ONE WAY
WE CAN GET A SENSE OF WHO'S ON
YOUR SIDE EVEN THOUGH WE DON'T
SEE THEM OR INTERACT WITH THEM
REMOTELY IN THESE WAYS BUT GREAT
TO SEE THE WAYS IN WHICH WE'RE
MOVING FORWARD.
>> I WANTED TO FOLLOW UP ON THE
DATA SHARING POLICY UPDATES AND
RFIs OUT.
WE'VE BEEN WORKING TO RESPOND ON
BEHALF OF GLOBAL ALLIANCE FOR
GENOMICS AND ONE TOPIC THAT'S
COME UP AS PEOPLE POSE CERTAIN
POTENTIAL MODIFICATIONS OR
CHANGES OR SUGGESTIONS TO THOSE
POLICIES, THE QUESTION OF
SUPPORT FOR IMPLEMENTATION IN
CASES WHERE IT'S NOT JUST PUSH
POLICY OUT AND SAYING EVERYBODY
SHOULD DO THIS BUT IN FACT A
NEED FOR MONITORING OR OTHER
LEVELS OF ENGAGEMENT AND WHAT
ROLE EITHER THE NLM OR NIH AT
LARGE HAS IN MORE DILIGENT
MONITORING OPPOSED TO WRITTEN
POLICIES, IF THAT MAKES SENSE OR
IS IT LEFT TO NIH FUNDED PROGRAM
AND PROGRAM OFFICERS TO MANUALLY
FOLLOW-UP AND TRY TO DECIDE IF
THINGS HAPPENED?
>> WE'RE GETTING CAUGHT UP ON
THINGS WHILE I'VE BEEN GONE BUT
I THINK IS QUITE A BIT OF
ATTENTION TO PROVIDING GREATER
CLARIFICATION AND QUESTIONS TO
THE RESEARCH COMMUNITY IN
PARTICULAR HAS ABOUT THE POLICY
AND IT'S IMPLEMENTATION.
WE AT NLM WE MIGHT BE ABLE TO
MOBILIZE THE USUALLY COMMUNITY
TO HELP THE RESEARCH COMMUNITY
UNDERSTAND AND INTERPRET AND DO
A BETTER JOB OF DATA SHARING.
I THINK THERE'S A LOT OF
DISCUSSION ONGOING ABOUT
PROCESSES FOR THE MONITORING AND
COMPLIANCE EFFORTS.
THERE'S A LOT STILL BEING WORKED
OUT IN THOSE AREAS EVERYTHING
FROM SHOULD SOME PART OF A
RESEARCHER'S DATA MANAGEMENT
PLAN BE MADE PUBLIC EARLY ON SO
THE COMMUNITY CAN KNOW WHETHER
OR NOT WHERE THE DATA MAY BE AND
SOMETHING HINTED AT IN THE
POLICY.
THERE'LL BE A ROLE FOR PROGRAM
STAFF IN DOING SOME REAL TIME
MONITORING.
THERE'S AN EXPECTATION THAT
STATUS AND OF DATA SHARING AND
SO FORTH WILL BE INCLUDED IN
PROGRESS REPORTS AND ALL THE
BROADER NIH POLICY IN TERMS OF
NEW MECHANISMS IN PLACE TO
STREAMLINE THE MONITORING
PROCESS ARE STILL BEING
DEVELOPED AND WORKED OUT I THINK
THOUGH THE EFFECTIVE DATA WAS
LESS THAN A YEAR FROM NOW
JANUARY OF NEXT YEAR, I THINK
THERE'S AN EXPECTATION TOO THAT
IMPLEMENTATION FROM THE POLICY
WILL CONTINUE TO IMPROVE OVER
TIME OVER WE AND THE RESEARCH
COMMUNITY GET MORE EXPERIENCE
FROM IT AND THERE'LL BE MORE
OPPORTUNITIES FOR ENGAGEMENT AND
COMMENTS AND INPUT AND SEE MORE
FAQs AND OTHER TYPES OF
DOCUMENTATION COMING OUT OF NIH.
WHAT DID I MISS?
>> ON THE RFI WE WELCOME ANY
SUGGESTIONS FOR WHAT YOU SEE ARE
THE IMPLEMENTATION QUESTION NEED
TO BE ADDRESSED OR WHAT SHOULD
BE PUT INTO PRACTICE.
>> I WANTED TO ECHO WHAT NEIL
SAID EN GREAT TO SEE THE
LEADERSHIP AND WONDERING WITH
THE LOSS OF DR. KORN IF THERE
WOULD BE MOVE TO REPLACE THAT
POSITION.
>> WE WANT INTEGRATION BETWEEN
OPERATIONS, POLICY, RESEARCH AND
INNOVATION.
AND SO WE WILL BE BRINGING IN
TITLE 42 LEVEL DIRECTOR WHO WILL
HAVE AS PART OF HIS OR HER
PORTFOLIO THE OVERSIGHT OF THE
BROAD RESEARCH OPERATIONS AS
WELL AS INTEGRATING RESEARCH
INTO OUR OPERATIONS AND OUR
INNOVATIONS.
WE HAVE AN OPPORTUNITY TO BE THE
INNOVATION ENGINE FOR THE NIH
AND WE HAVE INFORMATION DATA AND
SCIENTIFIC COMMUNICATION.
WE TAKE THAT SERIOUSLY.
I THINK THAT WE ANTICIPATE THAT
THE OPPORTUNITY SHOULD BE
ATTRACTIVE TO BOTH CLINICIAN
SCIENTISTS AND SCIENTISTS
THEMSELVES.
WE ARE CAST BROAD NET AND POLICY
DETACHED FROM OPERATIONS DOESN'T
WORK AND OPERATIONS DRIVEN
POLICY MIGHT OPTIMIZE IN A
NARROW BUT NOT BROAD WAY.
WE RECOGNIZE THE IMPORTANCE OF
OUTREACH BUT NLM PLAYS AN
IMPORTANT FRONT DOOR TO THE REST
OF THE CROSS-GOVERNMENT
ACTIVITIES AS WELL AS SOCIETY.
OUR PARTNERSHIPS WITH SCHOLARLY
PUBLICATIONS AND PUBLISHERS AND
WITH OTHER PARTS OF THE
GOVERNMENT IN TERMS OF OPEN DATA
IN CREATING A WAY TO POSITION
THE TALENT OF THE NLM IN A WAY
THAT BOTH INFORMS AND
ACCELERATES THOSE ACTIVITIES IS
CRITICAL.
IN ADDITION, WE'VE LEARNED OVER
THE LAST SEVERAL YEARS BUT MOST
SHARPLY IN THE LAST YEAR WE HAVE
TO ATTEND NOT ONLY TO THE
EXTERNAL POLICY ENVIRONMENT BUT
IT OUR POLICIES THAT GOVERN THE
WAY WE ACT HERE AT THE NIH
PARTICULARLY AS THE NLM MEETS
ITS RESPONSIBILITIES FOR
ACQUIRING, PRESERVING AND
SHARING LITERATURE AND DATA.
SO THIS ELEVATION OF POLICY AND
EXTERNAL AFFAIRS IN PARALLEL
WILL BRING US THE TALENT WE NEED
TO GO TO OUR THIRD CENTURY.
>> THANK YOU FOR THAT.
>> ANY OTHER QUESTIONS FOR
PATTI?
>> I THINK WE CAN GIVE PEOPLE A
BIO BREAK BEFORE THEY GO TO
THEIR BREAKOUT ROOMS.
>> I OPTED OUT OF THE MEETING I
TOLD YOU ALL NOT TO CLICK ON SO
I HAVE TO GET BACK.
I GUESS I'M A TEST CASE.
WE CAN TAKE A BIT OF A BREAK AND
THEN NO MORE THAN FIVE MINUTES
BE BACK IN YOUR WORKING GROUP
BREAKOUT SESSION.
I SHOULD ALSO SAY AT THIS POINT
THAT AT THE CONCLUSION OF THE
WORKING GROUPS WE WILL HAVE A
HALF HOUR BREAK FROM 12:15 TO
12:45.
DURING THIS TIME RECORDINGS WILL
BE STOPPED BUT THE BREAKOUT
ROOMS WILL REMAIN OPEN FOR
INFORMAL DISCUSSIONS.
AT 12:30 THE BREAKOUT ROOMS WILL
BE CLOSED AND ALL PARTICIPANTS
BROUGHT BACK TO THE MAIN SO YOU
CAN TAKE A BREAK NOW, GET TO THE
BREAKOUT ROOM AND THEN BE SURE
TO BE BACK IN THE MAIN ZOOM
MEETING ROOM AT THE BEGINNING OF
THE AFTERNOON SESSION AT 12:45.
OKAY.
THANK YOU.
>> FOR THE NEXT HOUR WE'LL HEAR
FROM THE WORK GROUP BREAKOUTS.
I'M NOT SURE WHO WILL BE GOING
FOR ANY OF THE GROUPS BUT FIRST
ON THE LIST IS STRATEGIC
PLANNING.
DO WE HAVE SOMEONE FROM THE
STRATEGIC PLANNING WORK GROUP.
>> NEIL, THAT WOULD BE ME.
LOOKS GOOD.
>> YES, THANKS.
I JUST HAVE TO GET MY NOTES UP
NOW ON MY iPAD AND I'LL BE READY
TO GO.
SO WE HAD A REPORT ON NLM'S DATA
REPORTING REPORTING, DATA
MANAGEMENT AND SUPPORT OF THE
STRATEGIC PLAN.
ONE OF THE ISSUES THAT'S COME UP
IN PREVIOUS DISCUSSIONS HAS BEEN
THE QUESTION OF BURDEN ON STAFF
TO BE CONSTANTLY REPORTING AND
YET AT THE SAME TIME LEADERSHIP
HAS TO HAVE THIS INFORMATION.
YOU CAN'T LEAD IN A VACUUM.
YOU CAN'T LEAD WITHOUT DATA TO
BASE YOUR DECISIONS ON.
CAN'T ANSWER REQUESTS FROM YOUR
BOSS AND FROM OTHER AGENCIES AT
NIH FROM CONGRESS, FROM THE
PUBLIC IF YOU DON'T HAVE THE
INFORMATION ABOUT WHAT IT IS
YOU'RE DOING AND HOW MUCH AND
ETCETERA.
IT'S A BALANCING ACT.
HOW DO YOU BALANCE THE EFFORT OF
REPORTING VERSUS THE NEED FOR
THE DATA.
HOW DO YOU BALANCE THE DOING OF
THE WORK VERSUS THE DOING OF THE
REPORTING.
SO IN LOOKING AT THIS QUESTION
IN HOW TO MANAGE THIS DATA IN A
SUSTAINABLE WAY, THERE WAS A
MOVE TOWARDS AUTOMATED SYSTEMS
THAT WOULD DO TWO THINGS.
SO ONE WAS TAKING THE EXISTING
TOOLS AND BEING ABLE TO
REPURPOSE DATA, PUT THEM INTO
THE NEW REPORTING TOOL SO THE
DATA DIDN'T HAVE TO BE
RE-ENTERED AND EASY TO FIND,
SEARCH AND REUSE.
THIS IS A LIST OF SOME OF THE
CURRENT TOOLS NLM IS USING.
WE'VE LOOKED AT THESE IN
PREVIOUS MEETINGS.
I'M NOT GOING TO DISCUSS THEM IN
ANY DETAIL.
SO OCCS AND OSI COLLABORATED ON
THE DEVELOPMENT OF THIS TOOL FOR
INTERNAL TRACKING.
THIS IS THE CURRENT EFFORT.
A VERY NEW EFFORT STILL BE PUT
INTO USE AND EVALUATED.
IT DOES RELY ON WEB FORMS RATHER
THAN WORD DOCUMENTS.
IT DOES TAKE THAT PREVIOUSLY
SUBMITTED INFORMATION AND POP IT
IN WHERE IT'S AVAILABLE AND IT
EXTRACTS INFORMATION ALREADY
COLLECTED IN OTHER SYSTEMS TO
MAKE IT USEFUL.
SO WHAT IT DOES IS REPURPOSE THE
INFORMATION THAT'S AVAILABLE IN
THE MOST EFFICIENT WAY.
SO WHAT SORTS OF DATA MANAGEMENT
IS NEEDED.
WHAT SORT OF INFORMATION DOES
LEADERSHIP NEED?
WELL, THEY NEED TO KNOW IF A NEW
INITIATIVE HAS BEEN PROPOSED,
WAS IT APPROVED?
IS IT MOVING FORWARD?
WHERE IS IT IN PROGRESS AND IS
IT DOING WHAT IT'S SUPPOSED TO
DO?
AND MAPPING TO NIH WIDE GOALS
AND TERMS.
STARTING, IF YOU LOOK AT THE
LEFT AND THINK OF THESE AS
PROGRAM AREAS, WHAT MIGHT THIS
AREA OF NLM ACTIVITY MAP TO?
IT MIGHT MAP TO SEVERAL
DIFFERENT THINGS ON THE NIH
STRATEGIC PLAN.
THE NEW SYSTEM ALLOWS THE USE OF
KEY WORDS OR TAGS.
IT ALLOWS TO CHARACTERIZE
DIFFERENT AREAS OF RESEARCH,
DIFFERENT AREAS OF ACTIVITY SO
THAT THEY CAN BE EASILY PULLED
OUT WHEN THEY'RE NEEDED AND ALSO
SPECIFIC REPORTING TOPICS SUCH
AS REQUIRED REPORTS ON PEDIATRIC
RESEARCH AND STRATEGIC PLANNED
PROGRESS AND THINGS LIKE THAT
AND ALSO THE RCDC RESEARCH
CONDITIONS AND DISEASE
CATEGORIES.
THIS IS THE OFFICIAL SOURCE THAT
NIH USES TO CATEGORIZE ITS
SPENDING.
IT'S ALSO WHAT CONGRESS LOOKS
AT, WHAT THE PUBLIC LOOKS AT,
WHAT PATIENT ADVOCACIES LOOK AT
AND DETERMINERS LOOK AT IT MAY
NOT BE THE TERMINOLOGY NLM MIGHT
USE OR MIGHT HAVE SOME OF THE
PROGRAM PERSON TO NLM LIKE
BIOMEDICAL INFORMATICS BUT IT IS
IMPORTANT WHERE THERE IS A
CORRESPONDENCE TO THE CATEGORIES
TO DOCUMENT THAT.
AS THIS SHOWS TRENDS OVERALL IN
NIH FUNDING AND FOCUS IT CAN
SHOW TRENDS IN NLM FUNDING AND
FOCUS AND IT INCLUDES GRANTS
INTERNAL AND EXTERNAL ACTIVITY
AND GRANTS AND CONTRACTS AS WELL
AS INTRAMURAL RESEARCH.
ANOTHER ASPECT OF THE
INFORMATION TRACKING PROJECT IS
AUTOMATED CATEGORIZATION.
IT HAS THE LIMITATIONS OF ALL
AUTOMATED CATEGORIZING INDEXING
SYSTEMS IN THAT IT RELIES ON THE
TEXT SUBMITTED BY THE
RESEARCHER.
IT'S VERY EASY TO GET FALSE
POSITIVES AND FALSE NEGATIVES AS
ANYBODY WHO'S WORKED WITH A
DATABASE OR ANY SORT OF
CATALOGING OR CATEGORIZING DATA
MANAGEMENT KNOWS BUT IT DOES
ALLOW YOU TO GO BY CATEGORY TO
DO TREES AND NESTING AND ROLL
UPS AND ACTIVITY CODES ON OTHER
COOPERATING AGENCIES OR CENTERS.
IT GIVES YOU A BROAD RANGE OF
DATA ACTIVITY COGNIZANT TO THE
AUTOMATION OF THIS AND AS THE
EFFORT TO ADDRESS THE SHORT
COMINGS, EACH CATEGORY GETS A
LOOK EVERY THREE TO FOUR YEARS
TO SEE IS IT STILL RELEVANT,
DOES IT COVER EVERYTHING IT
SHOULD?
DOES IT COVER THINGS THAT
PERHAPS SHOULD BE SPUN OFF AND
IS THERE NEW TERMINOLOGY THAT
SHOULD BE MAPPED TO THE AREA?
LOOKING AT THE FALSE POSITIVES
AND FALSE NEGATIVES AND SEEING
IF THERE'S A WAY TO
AUTOMATICALLY EXCLUDE THEM.
AND ARE THERE BUILT-IN SHORT
COMINGS IN AUTOMATICALLY
INDEXING THE AREA THAT NEED
ATTENTION.
MAINTAINING THE CATEGORIES IS
NIH WIDE AND TAKES A
CONSIDERABLE AMOUNT OF EFFORT
FROM PEOPLE ACROSS ALL THE
AGENCIES INCLUDING NLM.
OBVIOUSLY AS WE KNOW FROM OUR
OWN WORK FROM CONCEPTS GET
REMOVED, MODIFIED, MERGED,
SPLIT, PROJECTS MAY FALL IN AND
OUT OF A CATEGORY OR IN AND OUT
OF ANOTHER AS THE DEFINITIONS OF
THE VARIOUS CATEGORIES CHANGE
OVER TIME.
STILL IT GIVES A QUICK OVERVIEW,
IF YOU'VE EVER USED THE DATABASE
YOU KNOW YOU CAN GO IN AND IT'S
A PERFECT -- IT'S NOT EXACT.
IT GIVES A GOOD SNAPSHOT OF
EXACTLY HOW THE MONEY HAS BEEN
SPENT.
AND WHAT AREAS ARE IMPORTANT.
AS THE MEMBERS OF THE WORK GROUP
WE HAD FOLLOW-UP QUESTIONS ABOUT
IMPLEMENTATION WE GOT ANSWERS IT
WAS SO NEW WE DON'T REALLY KNOW
IF IT'S REDUCED THE BURDEN ON
PEOPLE BUT IT IS SEEN AS A
STRONG EFFORT TO REDUCE THE
BURDEN OF REPORTING AT THE SAME
TIME PROVIDING THE DATA THAT'S
NEEDED.
SO AND WITH THAT IF THERE'S ANY
QUESTIONS ABOUT THE REPORT I'LL
BE GLAD TO ANSWER THEM OR TO
QUICKLY REFER THEM TO MIKE AND
LET HIM DO THE HEAVY LIFTING.
>> OKAY.
THANK YOU.
>> THANK YOU, JANE.
DO WE HAVE A REPORT FROM THE
WORK GROUP?
>> I'LL PROVIDE THAT REPORT.
NO SLIDES FROM THIS GROUP.
WE SPENT OUR TIME WORKING ON
DIVERSITY, EQUITY AND INCLUSION
AT THE NLM THE TOPIC OF OUR LAST
BREAKOUT AS WELL.
WE HAD A COUPLE NICE
PRESENTATIONS AND DISCUSSION AND
I'LL SUMMARIZE AND ASK THAT MY
CO-MEMBERS OF THE COMMITTEE TO
CHIME IN AND REMIND ME AND
EVERYONE ELSE.
SO YOU ALL MAY REMEMBER FROM
LAST TIME THAT NLM IS MAKING
THIS MORE OF A PRIORITY AND
THERE'S ANOTHER CONVERSATION,
ANOTHER TOPIC ON THE AGENDA
LATER THIS AFTERNOON ABOUT THIS
AS WELL.
I'M GOING TO FLIP THE WAY WE
DISCUSS IT BUT DISCUSS WHAT DOES
IT LOOK LIKE IN INTRAMURAL
FACULTY AND HOW DIVERSE ARE THE
FACULTY AND WHAT'S THE GENDER
BREAKDOWN.
BOTTOM LINE I'M IN THE GOING TO
SHOW YOU THE DATA, IT DOESN'T
LOOK GOOD.
PRETTY MUCH ALL THE
INVESTIGATORS INTRAMURAL FROM
NLM ARE NEITHER NON-HISPANIC
WHITE OR ASIAN.
SO NO AFRICAN AMERICAN
REPRESENTATION AND THE REPORT
SHOWS ONE WOMAN AS WELL AND
THAT'S OF THE TENURED FACULTY.
BUT THERE'S THREE OTHERS
NON-TENURED THAT ARE SCIENTISTS
AS WELL.
SO TOTAL FOUR AMONGST ALL THE
FACULTY AND AGAIN HOW MANY TOTAL
SCIENTISTS IS THAT?
IT'S 10% OF THE TOTAL NUMBER AND
LOOK AT CREATING STRONGER
COMMUNITIES OF SUPPORT ACROSS
NIH BECAUSE JUST BREAKING IN IS
GOING TO BE HARD WITH CONCERN
WHETHER THIS IS A PLACE THAT
WOULD BE SUPPORTIVE.
WELL, NIH IS A PLACE THAT WOULD
BE SUPPORTIVE AND CERTAINLY HAS
GREATER NUMBERS.
USING RESOURCES TO HELP WITH THE
RECRUITMENT OF SCIENTISTS INTO
THE PROGRAM.
WE ALSO DISCUSSED PIPELINE
TERMS.
WE HAVE BEEN UPDATED ON A
WONDERFUL PROGRAM THAT NLM HAS
PUT TOGETHER CALLED THE
DIVERSITY AND DATA SCIENCE AND
INFORMATICS PROGRAM TARGETING
UNDERGRADUATES AND GETTING THEM
INTO EXPERIENCES IN RESEARCH
DURING THE SUMMER OF THEIR
JUNIOR AND SENIOR YEAR.
VIRGIN
VIRGINIA MEYER PRESENT THE
PROGRAM.
IT'S GETTING GOING AND THE
COMMIT WAS PLEASED TO SEE IT'S
GOING TO BE UP AND RUNNING THIS
SUMMER AND ENHANCEMENT HOW TO
RECRUIT FOLKS INTO IT.
THERE'S SOME DISCUSSION ABOUT
USING VIDEO OPPOSED TO JUST
WRITTEN OUT PARAGRAPHS FOR
APPROACH TO RECRUITMENT AND
DISCUSS ABOUT CONSIDERING COST
AND HOW THESE INTERNSHIPS FOR
SOME IS ABOUT MAKING MONEY FOR
THE REST THEIR COLLEGE EDUCATION
SO STIPENDS ARE REALLY IMPORTANT
BUT IT SOUNDS LIKE THERE'S NOT
MUCH THAT CAN BE DONE TO CHANGE
STIPENDS AND CAN'T DO LOAN
REPAYMENT EITHER.
MORE CONSIDERATION NEEDS TO BE
MADE IN HOW TO SUPPORT THAT.
THEN WE TALKED ABOUT TAKING CARE
OF THEM AFTER THEIR PROGRAM'S
OVER CREATING A NETWORK FOR THEM
AND MENTORSHIP AND GUIDANCE
BECAUSE THEY OFTEN DON'T HAVE
THE CONNECTIONS TO UNDERSTAND
HOW TO NAVIGATE TOWARDS GRADUATE
SCHOOL AND WHERE THEY DON'T HAVE
FRIENDS AND FAMILY IN THAT AREA
IT'S IMPORTANT TO PROVIDE THAT
AND WE HAD INSTITUTED THAT KIND
OF LONG-TERM FOLLOW-UP AND
SUPPORT.
FINALLY, EIGHT OF DISCUSSION
ABOUT MEASURING OUTCOME.
WHATEVER TERMS WERE PUT IN PLACE
20 YEARS AGO THEY DIDN'T HAVE
THE OUTCOME INTENDED BECAUSE
WE'RE IN THE SAME PLACE THAT WE
WERE 20 YEARS AGO AND OBVIOUSLY
IT'S NOT JUST TRUE FOR NLM BUT
ACROSS NIH AND ACROSS MEDICINE.
SO HOW DO WE MAKE OURSELVES MORE
RESPONSIVE AND DATA DRIVEN IN
THE APPROACHES WE'RE TAKING TO
COURSE CORRECT NOT EVERY 20
YEARS BUT ON AS WE GO TO MAKE
REAL AND LASTING PROGRESS.
SO THAT'S MY SUMMARY OF OUR
CONVERSATION.
SUSAN, GRANT, NANCY, ANY OTHER
COMMENTS OR ADDITIONS?
>> WELL DONE, CLAY.
>> THANKS.
>> ANY QUESTIONS FROM OTHER
MEMBERS FOR CLAY IN THE RESEARCH
FRONTIERS GROUP?
>> I'M WONDERING IF YOU TOUCHED
ON THE ASPECTS OF THE WORKFORCE
THAT ARE MORE PERSONAL.
FEELINGS OF BELONGING, FEELINGS
COMMUNITY.
THOSE ASPECTS.
>> WE DID TALK ABOUT THAT AND
FROM THIS STARTING POINT WHERE
NLM IS RIGHT NOW WE HAVE TO BE
THINKING ABOUT THAT BECAUSE IT'S
NOT GOING HAPPEN AND THAT'S WHAT
GOT US TALKING ABOUT BRINGING A
WHOLE COHORT SO HAVE YOU SOME
SUPPORT ACROSS THE COHORT AND
THINKING OF THE TERMS AS CUTTING
ACROSS NIH.
YOU HAVE A GROUP OF PEOPLE AND
FOCUSSING ON HEALTH EQUITY
THERE'S A LOT OF DATA THAT SHOWS
GROUPS UNDER REPRESENTED IN
SCIENCE PARTICULARLY IN THE
SCIENCE THEY'RE INTERESTED IN
HEALTH EQUITY QUESTIONS AND
THOSE ARE UNDER FUNDED.
THAT WOULD BE ONE WAY TO BRING
IN A COHORT AND GROUP THAT CAN
COHESIVELY PROVIDER SUPPORT FOR
EACH OTHER ACROSS THE NIH.
>> I'M STRUCK BY THE
CONVERSATION AND HOW IT
RESONATES.
THERE'S AN INITIATIVE AT NIH
CALLED THE FACULTY INSTITUTIONAL
RECRUITMENT FOR SUSTAINABLE
TRANS FORMATION OR FIRST
PROGRAM.
THERE MAY BE SOME OPPORTUNITIES
TO LEVERAGE ANY LESSONED LEARNED
AND IDEAS AND CONSIDER THEM IN
THIS CONTEXT AS WELL.
>> ANY OTHER QUESTIONS?
BEFORE WE MOVE TO PUBLIC
SERVICES I'D LIKE TO STEP BACK
AND ASK JOE FRANCIS TO WEIGH IN
ON THE STRATEGIC PLANNING GROUP
REPORT ABOUT SOME ITEMS
INVOLVING THE V.A. IN
PARTICULAR.
>> CAN YOU ALL HEAR IS THE
>> YES.
WE HAD AUDIO DIFFICULTY EARLIER
SO I COULDN'T SPEAK UP BEFORE
HAND.
I FEEL FOR THE CHALLENGE YOU
HAVE IN CATEGORIZING SOMETHING
EVOLVING AS QUICKLY AS RESEARCH
AND WE CAN GIVE YOU TWO
PERSPECTIVES AND ONE IS THROUGH
OUR OFFICE OF RESEARCH AND
DEVELOPMENT WHERE I WAS DIRECTOR
OF OPERATIONS AND MY OWN CURRENT
AREA VERY DATA SCIENCE ORIENTED.
MY DIVISION IS CALLED ANALYTICS
AND PERFORMANCE INTEGRATION AND
LOOKED AT QUALITY MEASUREMENT OR
A BIG EFFORT WE'RE UNDERTAKING
IS COVID BIO SURVEILLANCE AND
WE'VE UTILIZED THE
CLASSIFICATION SYSTEM CALLED
DESIGNATED RESEARCH AREAS AND
MOST OF THESE ARE THINGS THAT
CONGRESS HAS HINTED ARE
IMPORTANT TO THEM AND THESE DRAs
ARE BUILD INTO OUR BUDGET
PROCESS IN ANNUAL REPORTING AS
PART OF THE BUDGET CYCLE WITH
OMD, WHITE HOUSE AND THE
APPROPRIATIONS COMMITTEES.
AND IT'S HARD TO KEEP THESE UP
AND TO ALSO RECOGNIZE THAT
SOMETIMES THE BEST RESEARCH
ACRO
CROSSES THESE CATEGORIES AND
THEY'VE BEEN RELATIVELY STABLE
THOUGH MORE RECENTLY GENOMICS
AND SUICIDE PREVENTION AND
HEALTH EQUITY HAVE EMERGED AS
TOPICS AND ARE CARRYING A LOT OF
WEIGHT.
THAT LIST IS SHORT AND I'LL ASK
MY RESEARCH COLLEAGUES TO SEND
THE UPDATED LIST AND I'LL SHARE
THAT WITH YOU AND WITH PATTI.
THE SECOND THING IS A RELATED
CHALLENGE BUT IN OUR WORLD OF
QUALITY, WE MEASURE HOSPITAL
PERFORMANCE TYPICALLY THROUGH
THINGS EXTRACTED FROM THE
ELECTRONIC HEALTH RECORDS AND
BUILT AROUND STANDARDIZED
MEASURED SPECIFICATIONS BUT IT
OFTEN MISSES A LOT OF THE NUANCE
OF QUALITY OF CARE.
I SOMETIMES THINK MEASURING
HOSPITAL QUALITY SAY MIXED
METHODS RESEARCH PROJECT WHERE
YOU NEED NUMBERS AND NEED GOOD
STORIES AND ILLUSTRATIONS AND
WE'RE TRYING TO ADDRESS THOSE
QUALITATIVE ASPECTS OF QUALITY
THROUGH MORE ADVANCED TECHNIQUES
OF MACHINE LEARNING AND WE TAKE
THINGS LIKE REPORTS FROM SAY AN
EXTERNAL REVIEW LIKE THE JOINT
COMMISSION OR WE HAVE AN
INTERNAL AUDITING GROUP CALLED
THE OFFICE OF THE MEDICAL
INSPECTOR AND HAVE OUR OWN
AGENCIES INSPECTOR GENERAL AND
THEN WE HAVE THINGS LIKE
SENTINEL EVENTS THAT GET
REPORTED OR SAFETY EVENTS WITH A
ROOT CAUSE ANALYSIS.
THERE'S RICH TEXT -- TEXTURAL
INFORMATION AND FINDING METATAGS
FOR THE INFORMATION WE GLEAN.
THE WHOLE IDEA IS TO TREND WHAT
MAY BE EMERGING PROBLEMS.
WE THINK BACK YEARS AGO WHEN WE
WERE STARTING TO SEE OVERDOSES
FROM OPIOIDS, AND GOSH A DECADE
AGO WE WOULD HAVE LOVED TO HAVE
BEEN ABLE TO SAY THIS REPORTS OF
SUICIDE AND SEE TRENDS BEFORE
THEY BECOME A HEADLINE.
IT'S IMMENSELY CHALLENGING.
I DON'T THINK WE'VE QUITE
FIGURED OUT HOW BEST TO DO THIS
BUT FOR US WE WANT TO HAVE A
SYSTEM OF TAGS THAT STAY WITH
THESE INSIGHTS AND THEN WE CAN
KEEP THE HISTORY OF THIS BECAUSE
THE CONCEPT EVOLVED.
THE OLD TAGS DON'T BECOME USEFUL
BUT SOMETIMES THE LANGUAGE
CHANGES OR WE HAVE A BETTER
UNDERSTANDING OF A PROBLEM AND
CAN WE KEEP ALL THIS IN A NICE
METADATA REPOSITORY TO THAT
ALLOWS US TO SEE HOW THESE
THINGS CHANGE OVER TIME.
WHEN WE GAIN INSIGHT WE'LL LET
YOU KNOW.
I WAS ALSO GOING TO SAY, BY THE
WAY, I WASN'T PART OF THE
BREAKOUT BUT WE HAVE A NUMBER OF
ISSUES AROUND DIVERSITY, EQUITY
AND INCLUSION.
I'M PLEASED THREE-QUARTERS OF MY
DATA SCIENTISTS ARE WOMEN.
IT'S NOT COMMON IN THE WORLD OF
DATA SCIENCE QUARTER AND MY
DIRECTOR REPORTS ON MINORITY AND
THAT NUMBER NEEDS TO BE HIGHER
BECAUSE WE NEED REFLECT MORE THE
VETERAN GROUP WE SERVE BECAUSE
THEY'RE MORE BALANCED IN GENDER
THESE DAYS AND HAVE A HIGHER
NUMBER OF MINORITIES SERVING IN
AMERICA'S ARMED SERVICES SO
WE'RE TRYING TO GET TO THAT
REALM.
A LOT OF MULTI-LAYERED EFFORTS
WHICH START WITH RECRUITMENT AND
HAVE TERMS THAT ALLOW US TO DO
DIRECT HIRING IN ORDER TO BRING
TALENTED INDIVIDUALS AND BRING
THEM UP TOO SPEED.
NOBODY GETS TO WORK IN MY OFFICE
IF THEY HAVEN'T HAD A CHANCE
BECOMING AN APPRENTICE AND
JOURNEYMAN AND ULTIMATELY
BECOMING AN EXPERT WITH DATA.
MAYBE SOME PARALLELS.
HAPPY TO TALK OFFLINE.
THANKS FOR THE OPPORTUNITY.
>> I APPRECIATE THAT.
IT'S QUITE A CHALLENGE TO WORK
AT AN INSTITUTION THAT TAKES
TIME TO RESEARCH AT THE SAME
TIME.
>>
>> THANK YOU.
WE HAVE A SERIES OF MEETINGED
THAT CULMINATED IN THE MEETING.
I WANTED TO MENTION THAT THIS IS
OUR SMALLER COMMITTEE AND WE
HAVE BOTH INTERNAL NIH BOARD OF
REGENTS MEMBERS AS WELL AS
EXTERNAL.
THERE'S BEEN CHANGES INTERNALLY
WITH BECKY LEAVING AND ANNA
KLINE TAKING THE LEAD ON THE
CLINICAL TRIALS.gov AND WE HAVE
TWO NEW MEMBERS DR.
I WANTED TO TAKE A BACK STEP TO
REMIND YOU OUR VISION AND THE
STRATEGIC GOALS FOR THE
CLINICALTRIALS.gov.
IT SERVES A TRANSPARENT AND
TRUSTED PART OF THE RESEARCH ECO
SYSTEM.
WE HAVE THE PATIENT CENTERED
AUDIENCE AND WE HAVE THE
INVESTIGATORS AND RESEARCHERS
THAT ARE CONDUCTING THE TRIALS
AND UTILIZING THE INFORMATION
FROM THE TRIALS.
OUR STRATEGIC GOALS ARE TO
ADVANCE CLINICAL TRIAL
INFORMATION THAT IS CURRENT,
COMPLETE AND RELIABLE.
THAT ANYBODY CAN EASILY FIND AND
UTILIZE AND PROVIDE A SERIES OF
RESEARCH AND TOOLS THAT WILL
PROVIDE VALUE TO THE RESEARCH
ECO SYSTEM.
SO WE ARE, IF YOU CAN BELIEVE
THIS IN YEAR THREE OF OUR
MULTI-YEAR PROGRAM OF PROGRAM
MODERNIZATION.
OUR FIRST YEAR FOCUSSED ON
ENGAGEMENT, ENGAGING ALL THE
VARIOUS STAKEHOLDERS TO REALLY
DETERMINE WHAT WHERE WE WERE
HEADED AND DEVELOP OUR
MODERNIZATION ROAD MAP.
IN YEAR TWO WE WORKED ON
DEVELOPMENT OF A SERIES OF
PRODUCTS AND PROJECTS AND WHICH
THEN CULMINATED IN A BETTER
RELEASE TO THE STAKEHOLDERS AND
IN YEAR THREE WE'RE IMPLEMENTING
THE REST OF THE MODERNIZATION
ROAD MAP AND ALSO TESTING AND
EVALUATING THE TOOLS OUR FIRST
RELEASE OF THE PRS BETA WAS
LAUNCHED JANUARY 27.
SO VERY RECENTLY.
THERE'S A RERECORD REVIEW WITH A
DEMONSTRATION PRESENTED BY
DR. DAVINS YOU CAN WATCH AT THE
SITE IF YOU ARE ALSO INTERESTED
IN GETTING MORE DETAILS ON THAT.
WE ALSO HAVE THREE RESEARCH
INITIATIVES ONGOING.
ONE IS ON AUTOMATION SUPPORT AND
THEY'RE SUPPOSED TO SUPPORT THE
MODERNIZATION.
THERE WAYS RESEARCH PROJECT AND
A THIRD ON CITATION FORMAT FOR
CLINICALTRIALS.gov AND THEY HAVE
BEEN PRESENTED TO US AND WE'VE
BEEN ABLE TO GIVE FEEDBACK
THROUGHOUT TO THE IMPLEMENTATION
OF THE PROGRAMS AND THEY'RE
STILL ONGOING AS WE IMPROVE THE
SITE.
THE FIRST RELEASE WAS LAUNCHED
AND IT COMES TO US WITH A MODERN
LOOK AND FEEL.
IT'S NOW ABLE TO USE IT EASILY
ON MOBILE DEVICES.
IT HAS EASY TO UNDERSTAND
INFORMATION AND A NEW
CLOUD-BASED INFRASTRUCTURE.
IT'S A NEW AND IMPROVED
CLINICALTRIALS.gov AND RUNS IN
PARALLEL WITH OUR CURRENT SITE
AS WE MOVED INTO MODERNIZATION.
WE SET METRICS FOR EVALUATION
AND AIM TO COLLECT QUALITATIVE
AND QUANTITATIVE METRICS THAT
WILL HELP US ASSESS HOW THE
MODERNIZATION EFFORT IS GOING
AND WHAT ARE THE SUCCESSES AND
THE AREAS FOR IMPROVEMENT.
WE USED QUANTITATIVE DATA WHICH
COMES THROUGH THE WEBSITE USER
SURVEYS AND ALSO WITH SITE
ANALYTICS.
SOME OF OUR MORE QUALITATIVE
DATA COMES FROM THE USERS'
COMMENTS AS WELL SOME OF THE
SURVEY COMMENTS WE ALSO
RECEIVED.
IT WILL BE AVAILABLE AND THE NEW
MODERNIZED WEBSITE WILL BE
AVAILABLE ALONG WITH THE
PARALLELED ONE THAT WE ARE
CURRENTLY USING.
SO BOTH WILL BE USABLE AT THE
SAME TIME.
WE'LL ADD FEATURES TO THE BETA
SITE AS WE MOVE ALONG AND
IMPROVE UNTIL ALL NEEDED KNEE
TOURS ARE INCLUDED.
EVENTUALLY THE BETA SITE NOW
BEING TESTED WILL BE THE PRIMARY
SITE AVAILABLE.
THAT'S AS WE RETIRE THE OLD
SITE.
SO HERE'S SOME OF THE PLANNED
FEATURES.
THE EXPERIENCE WILL HAVE
EXPANDED DOWNLOAD FORMATS.
WE'LL HAVE ADVANCE SEARCH AND
PEOPLE ARE REALLY CLAIMING THEY
WANT TO SEE THESE ADVANCED
SEARCHS VERY SOON AND REFINING
WAYS OF REFINING THE SEARCH
RESULTS.
THE STUDY RECORD EXPERIENCE WILL
ALSO HAVE IMPROVED RECORD
HISTORY AND EASY ACCESS TO THE
REPORT AND CONTENT TO SUPPORT
MATERIALS FOR USING THE
SEARCHING AND WILL BE ABLE TO
CONNECT TO TRUSTED HEALTH
INFORMATIONS AND ALSO ONE OF OUR
PLANNED FEATURES IS TO BETTER ON
BOARD OUR USERS.
THE PLAN FOR COMMUNICATION OF
FUTURE RELEASES WILL HAVE THE
INITIAL POST BETA RELEASE IN THE
WEBSITE AND NEW RELEASED NOTES
AND PAGES AND AN E-BULLETIN TO
HIGHLIGHT THE NEW THINGS THAT
ARE FEATURED SO THERE WILL BE A
BIG MASSIVE RELEASE AGAIN AS WE
LAUNCHED IT ALREADY BUT THERE
WILL BE WEB PAGE NOTES AS WE
MAKE ANY FUTURE CHANGES SO THAT
PEOPLE ARE AWARE OF WHAT THOSE
ARE AND ARE CONTEMPLATING DOING
AT LEAST ONCE OR TWICE A YEAR
SUMMARY OF ALL THE CHANGES THAT
MAY HAVE BEEN PLACED ON TO THE
WEBSITE.
THAT'S KIND MUCH IT ON OUR END
AND WE CONTINUE TO MEET AND HAVE
SEVERAL MEETINGS AND OUR GROUP
IS VERY COMMITTED TO STAYING ON
BOARD AND CONTINUING WITH THIS
EFFORT.
I'M OPEN FOR ANY QUESTIONS AND I
DON'T FLOW IF ANNA OR ANYONE
ELSE IN OUR GROUP WOULD LIKE TO
ADD ANYTHING TO OUR
PRESENTATION.
>> NO, THAT WAS GREAT.
THANK YOU SO MUCH.
>> I WAS CURIOUS ABOUT
INTRODUCING THE BETA SITE.
DO YOU HAVE A TIME LINE IN
MOVING THE FEATURES AND MOVING
FROM THE CURRENT SIDE TO THE
BETA?
>> FOR THE CLINICALTRIALS.gov
BETA SITE WE'RE GOING TO
CONTINUE TO ADD FEATURES
THROUGHOUT THE YEAR AND HOPING
THOSE ADDITIONS WILL BE MORE
FREQUENT YOU WON'T HAVE TO WAIT
LONG MAYBE EVERY ONE OR TWO
THERE'LL BE NEW ADDED
IMPROVEMENTS AND WE'LL ASSESS TO
BE PART OF THE PRIMARY SITE.
WE'RE MAKING AN AGILE APPROACH
SO AS WE CONTINUE TO ADD
SOMETHING NEW WE'RE LEARNING HOW
IT'S RECEIVED AND HOW TO MAKE IT
BETTER.
WE WANT TO MAKE SURE WE'RE
COMFORTABLE AND THE PUBLIC IS
COMFORTABLE WITH ALL THE
FEATURES WE'RE SEEING BEFORE WE
MAKE IT PRIMARY AND COMING ON
THE CLINICALTRIALS.gov SITE A
YEAR OR TWO BEFORE WE DO THAT.
>> ARE THERE QUESTIONS FOR
LOURDES AND THE PUBLIC SERVICES
WORKING GROUP?
>> BEFORE I FINISH I WANT TO DO
A SHOUT OUT TO ANNA AND THE
ENTIRE TEAM.
THIS IS A HUGE TEAM OF PEOPLE
AND VERY TECHNICAL AND
CONTINUOUSLY ADVANCING THE
CAPABILITY AND MODERNIZATION
EFFORTS.
I WANT TO DO A SPECIAL THANKS TO
THE ENTIRE TEAM FOR ALL OF THEIR
EFFORTS AS WELL.
>> GREAT.
THANK YOU, ANNA FOR JUMPING IN
AND HANDLING THAT.
LAST BREAKOUT GROUP IS FROM
COLLECTIONS AND I BELIEVE
CHRISTI'S GOING TO BE GIVING OUR
REPORT.
>> YES, THANK YOU VERY MUCH.
I'M HAPPY TO HAIR UPDATES FROM
OUR GROUP.
WE DISCUSSED THE PILOT AND THE
COMPARATIVE GENOMICS RESOURCE
AND THE ONGOING EFFORT TO
CONSIDER NLM DATA SETS AS PART
OF NLM COLLECTIONS AND WHAT THAT
MEANS IN PRACTICAL TERMS.
THE FIRST PRESENTATION WAS BY
KATIE FUNK WHO PRESENTED ON THE
PILOT AND THE PRIMARY GOAL AS A
REFRESHER THE GOAL OF THE PILOT
HAS BEEN TO EXPLORE NEW
APPROACHES TO EXPANDING
DISCOVERABILITY OF NIH RESEARCH
RESULTS.
SO THROUGH THIS PILOT HES
THERE'S BEEN INTERESTING RESULTS
AND OUTCOMES SO THE FIRST OF
THESE THE TECHNICAL FEASIBILITY
WAS CONFIRMED AND IT'S IN PLACE
TO INGEST IN PUB MED CENTRAL
AND PUB MED AND THERE WAS A
BETTER UNDERSTANDING WHAT THIS
MEANS IN THE CONTEXT OF NIH
RESEARCH SHARING.
WHAT ARE NIH AROUND PRE PRINTING
AND HOW IT LED TO
DISCOVERABILITY IN THE CONTEXT
OF PRE PRINT.
THERE'S COMPELLING EVIDENCE THEY
HAVE A ROLE TO PLAY IN ENABLING
ACCESS TO RESEARCH AT NIH.
JUST AS FOR CONTEXT ABOUT
CURRENT COLLECTION LOOKS LIKE.
THERE'S MORE THAN 3,000 PRE
PRINTED ON COVID-19 RESEARCH TO
DATE.
55% OF THESE PRE PRINTS ACTUALLY
LINK TO A PUBLISHED JOURNAL
ARTICLE WHICH LEADS US TO
CONSIDER THE REMAINING ITEMS
THAT DON'T LINK OUT TO AN
EXISTING PEER-REVIEWED
PUBLICATION HELPS US TO
UNDERSTAND THE DIVERSITY OF THE
DIGITAL OBJECTS BEING CREATED
THROUGH THEIR RESEARCH ACTIVITY.
ANOTHER INTERESTING ASPECT OF
THIS ARE THE LICENSES THAT ARE
IN PLACE.
SO TWO-THIRDS OF THE PRE PRINTS
IN THE COLLECTION EITHER HAVE A
CC BY OR CCO LICENSE.
WHAT THAT ALLOWS IS FOR
FULL-TEXT INDEXING OF THOSE
RECORDS WHICH LEADS TO IMPROVED
DISCOVERABILITY IN PUB MED
CENTRAL ANDS AGAIN THERE'S A
PERCENTAGE THAT ISN'T LINKED TO
A PEER-REVIEWED PUBLICATION AND
FROM MY PERSPECTIVE THERE WAS NO
EVIDENCE OF A NEGATIVE IMPACT ON
TRYST WITH THE CONTEXT OF PRE
PRINTS.
SO THE TEAM USED STRATEGIES FOR
WAYS TO IMPROVE PRESENTATION AND
DOCUMENTATION AND THEY CONTINUE
TO CONTEMPLATE THE DATA AND
INTEREST HOW TO DO ENGAGEMENT IN
THE FUTURE.
TO PROVIDE PERSPECTIVE ON WHAT
THAT MEANS, THEY DID A SURVEY OF
THOSE USERS WHO ACCESSED THE PRE
PRINTS IN THE NLM COLLECTIONS
AND THEY FOUND THIS PRIMARILY
THEY'RE LOOKING AT RESEARCHERS
AND HEALTH CARE PROVIDERS,
STUDENTS AND A LARGE PERCENTAGE
OF PEOPLE WHO IDENTIFIED AS
OTHERS WHO MAY BE MEMBERS OF THE
PUBLIC AND OTHER KINDS OF
STAKEHOLDERS.
OVERWHELMINGLY THE DATA SHOWED
HAVING PRE PRINTS DOES NOT
CHANGE THE RESPONDENT'S TRUST IN
THE INFORMATION WHICH IS REALLY
EXCITING.
NEXT WORK FOR THE TEAM IS TO
UNDERSTAND HOW LESSONS LEARNED
FROM THE COVID-19 RESPONSE COULD
BE APPLIED MORE BROADLY IN THE
FULL SPECTRUM OF NIH RESEARCH
AND WHAT ARE THE IMPLICATIONS OF
DOING SO.
SO THE SECOND UPDATE I WAS
PLEASED TO PROVIDE THE SECOND
UPDATE ON THE COMPARATIVE
GENOMICS BOARD OF REGENTS WORK
GROUP.
THE CGR IS A FIVE-YEAR
INITIATIVE TO PROVIDE A
CONTEMPORARY TOOL AND DATA ECO
SYSTEM AND SUPPORTING STUDIES
FOR EUKARYOTIC ORGANISM.
WORK ON THE CGR REPORTS THROUGH
TWO SPECIFIC NIH GOVERNING
BODIES WITH COMPLIMENTARY ROLES.
AND THE FIRST ARE THE STEERING
COMMITTEE.
IT MONITORS BUDGET AND MILESTONE
PROGRESS, SUCCESS METRICS AND
ENSURE THE PROJECT REMAINS
WITHIN ITS APPROVED AND FUNDED
SCOPE.
THEY ALSO SERVE AS A GREAT
CONDUIT TO AMPLIFY
COMMUNICATIONS ABOUT CGR TO
STAKEHOLDERS.
THE OTHER OF THESE IS THE
NATIONAL LIBRARY OF MEDICINE
BOARD OF REGENTS CGR WORKING
GROUP I HAVE THE PLEASURE OF
CHAIRING AND WE HAVE AN
EXECUTIVE SECRETARY AND THE
BOARD OF REGENTS WORKING GROUP
HELPS TO ENGAGE THE SCIENTIFIC
COMMUNITY DIRECTLY TO GET
FEEDBACK FROM STAKEHOLDERS AND
IN DO SO HELPING NLM SET
PRIORITIES AND GUIDE DEVELOPMENT
OF THE APPROACH OF THE
SCIENTIFIC DISCOVERY THROUGH THE
CGR.
THE WORK GROUP WAS ESTABLISHED
DURING 2021 AND THERE WAS AN
INTRODUCTION TO THE GROUP TO
EACH OTHER AND OVERVIEW OF THE
CGR PROJECT, A DISCUSSION OF
GOVERNING BODY RULES AND
RESPONSIBILITIES AND AN
INTERESTING DISCUSSION ABOUT HOW
DO WE CONNECT WITH RESEARCH
COMMUNITIES.
WHAT MESSAGING WILL RESONATE AND
WHAT AVENUES OF ENGAGEMENT ARE
MOST IMPACTFUL, WHAT ROLE AN CAN
THE WORKING GROUP PLAY AND WHAT
DO YOU NEED FROM OUR TEAM TO
EMPOWER THEM TO HAVE THE
CONVERSATIONS.
FEEDBACK FROM THE WORKING GROUP
INCLUDED SUGGESTIONS FOR
OUTREACH.
FOR EXAMPLE, THE DEVELOPMENT OF
AN RFI WAS SUGGESTED.
THE DEVELOPMENT OF EDUCATIONAL
MATERIALS AIMED AT PARTICULAR
STAKEHOLDER COMMUNITIES
PARTICULARLY WITHIN AGE EYE OF
INCREASING THE DIVERSITY OF THE
WORKFORCE WORKING WITH RESOURCES
SUCH AS THIS.
THERE WAS ALSO DISCUSSION ABOUT
LEVERAGING THE CGR WEB PORTAL TO
SHARE PROJECT DEVELOPMENTS AND
THAT IS NOW AVAILABLE AT THE
NCDI SITE.
AND THEN ACTUAL ACTIVE WORK BY
THE WORKING GROUP.
AND CONSIDERING DEVELOPMENT OF
SOME PERSPECTIVES PIECES FOR THE
PEER-REVIEWED LITERATURE TO GET
THE WORD OUT TO STAKEHOLDERS.
HOLDING EVENTS SUCH AS WORKSHOPS
FOR COMMUNITY ENGAGEMENT OR
PRESENTATIONS AT CONFERENCES AND
THEN FINALLY REALLY OPEN AND
INCLUSIVE OUTREACH WITH CLEAR
PARTNERSHIPS.
FOR EXAMPLE, CONSIDERATION HOW
WE REACH OUT TO PRIVATE INDUSTRY
ORGANIZATIONS OR EXAMINING
INTERMEDIARIES BETWEEN CGR AND
PREGNANT RESEARCHERS.
THIS PARTICULAR HAS A WIDE RANGE
OF ACTIVITIES IN PROGRESS AND
UPCOMING.
THE FIRST IS PARTICIPATION IN
THE CGR STEERING COMMITTEE NEXT
WEEK WHICH I'M EXCITED ABOUT.
WE'RE ALSO ENGAGING IN EXTENSIVE
OUTREACH AND WE'RE SUPPORT A
CONTRACTED TEAM WITH EXPERTISE
IN DEVELOPING COMMUNITY
ENGAGEMENT STRATEGIES.
WE REACHED OUT TO THE
COLLECTIONS WORKING GROUP FOR
TODAY'S DISCUSSION TO ASK
SPECIFIC QUESTIONS ABOUT WHAT
COMMUNICATION PATHS CAN BEST
ENABLE US TO GET THE FEEDBACK
AND HELP IT REFLECT TOWARD THIS
PARTICULAR PROJECT AND THEN ALSO
HOW DO WE GAUGE THE IMPACT OF
THIS INPUT AND OBVIOUSLY TO BE
ABLE TO PROVIDE ACCOUNTABILITY
TO THE COMMUNITY IN ADDITION TO
REALLY STRONG CONNECTIONS WITH
THE COMMUNITY.
FINALLY, WE HEARD FROM DIANE
BABBSKI ON THE COLLECTIONS.
THE BOARD REVIEWED AND PROVED
THE UPDATED COLLECTION POLICY
AND AND OVER THE LAST SEVERAL
MEETINGS WE'VE BEEN TALKING
ABOUT THIS IN THE CONTEXT OF NLM
PRODUCTS AND DATA SETS AND THIS
BEGS THE QUESTION WITH THE
COLLECTION GUIDELINES, DO WE
NEED TO CONSIDER REFINING THEM
TO CONSIDER NLM DATA SETS?
DIAN PROVIDED A PERSPECTIVE AND
BACKGROUND OF THE CLIMATE AND
IMPACT ON COLLECTION AND THE
ROLE ON DATA AS CRITICAL
RESOURCES.
THE IDEA THAT DATA CERTAINLY
AREN'T GETTING ANY SMALLER IN
THEIR IMPACT IN OUR SPACE AND
THE ABILITY TO GENERATE STORE,
SHARE AND COMBINE DATA CONTINUES
TO INCREASE AS WELL.
THIS IMPACTS THE DISCUSSION
ABOUT THE COLLECTIONS AND
COLLECTION GUIDELINES INCLUDING
WITHDRAWAL AND DISPOSAL WORK
FLOWS AND DIAN LED AN
ENTHUSIASTIC CONVERSATION ABOUT
COLLECTION GUIDELINES AND
WHETHER NORT AND HOW WE CONSIDER
REFINING THEM FOR DATA SETS AND
CONSIDERING DATA SET
CHARACTERISTICS SUCH AS ASPECTS
SUCH AS PRACTICES FOR LIVE DATA
SETS AND REQUIREMENT OF THE DATA
SET AND HOW LONG WE KEEP THE
DATA ASSOCIATED FILES AND SO ON.
AND I WELCOME OTHER MEMBERS OF
THE COLLECTION GROUP TO WEIGH IN
WITH ANYTHING WE SHOULD SHARE
WITH THE GROUP.
>> GOOD OVERVIEW OF THE
DISCUSSION.
ANY OTHER DISCUSSIONS FROM
MEMBERS OF THE GROUP OR
QUESTIONS FROM THE REST OF YOU
ANY OF US.
>> TO PERSONALLY THANK THE
WORKING GROUP AND PROVIDES A
NICE BRIDGE WEN THE INTERNAL
MANAGEMENT AND NIH AND BROADER
COMMUNITY AND THANKS TO THE NLM
STAFF WORKING WITH THEM.
>> I WANT IN PARTICULAR TO THANK
DIANE AND KATIE AND OTHERS THEY
PROVIDE EXTREMELY USEFUL AND
VERY INTERESTING REPORTS FOR US.
WE ARE SEVERAL MINUTES AHEAD OF
SCHEDULE.
WE HAVE TIME FOR OTHER QUESTIONS
ABOUT ANY OF THE GROUPS OR ANY
OF THE MATERIAL PRESENTED.
I MIGHT ALSO USE THE TIME TO
REMIND BOARD MEMBERS OF THE
DISCUSSION SCHEDULED FOR
TOMORROW I BELIEVE FROM 10:00 TO
11:00 OR 10:00 TO 12:00 ABOUT
REACTIONS, IDEAS INVOLVING THE
WORKING GROUPS.
I INVITE MEMBERS TO PARTICIPATE
IN THAT WE CAN CARRY SOME OF
THIS DISCUSSION FURTHER.
ANY OTHER DISCUSSION OR COMMENTS
ABOUT THIS?
>> NEIL, ON A PERSONAL NOTE
LOOKING AT THE COMPARATIVE
GENOMICS RESOURCE, WE VERY
EAGERLY WELCOME ANY KIND OF
FEEDBACK OR IDEAS FOR WAYS WE
CAN ENGAGE WITH COMMUNITY AND IF
THAT'S SOMETHING THAT YOU WOULD
LIKE TO DISCUSS FURTHER, PLEASE
DON'T HESITATE TO REACH OUT TO
V
VAL -- VALERIE OR MYSELF AND
WE'RE AT THE POINT IN THE
PROJECT WHERE THERE'S LOTS OF
GOOD IDEAS BUT WELCOME MORE AND
OUR WORKING GROUP IS PHENOMENAL
AND EVERYONE'S ENTHUSIASTIC TO
MOVE FORWARD AND THE WANT TO
GIVE THEM SOMETHING TO GRAB ON
TO.
>> I WANT TO MAKE SURE WE HAVE
IN THIS MONTH'S REPORT THE LIST
OF THE MEMBERS OF YOUR WORKING
GROUP BECAUSE THEY DO FAR ANDTHE
BOARD OF REGENTS AND I'D LIKE TO
MAKE SURE WE ACKNOWLEDGE THEM.
WE HAVE A LOT OF VOLUNTEER
ACTIVITY.
I WANT TO TALK WITH THE BOARD
ABOUT WHY THIS ENGAGEMENT IS
IMPORTANT AND THE MODERN IZATION
PROJECT IS PROBLEM ALY $20
MILLION TO $25 MILLION AND THE
GENOMIC RESOURCE MAY EXCEED THAT
SO WE'RE TALKING ABOUT $50 TO
$75 MILLION OF INVESTMENTS
COMING INTO THE NLM FROM
OUTSIDE.
THAT'S FROM THE NIH EITHER
THROUGH THE CAPITAL INVESTMENT
FUND WHICH UNDER WRITES THE
CLINICALTRIALS.gov OPERATION OR
THROUGH THE TAP OF THE
INSTITUTES AND CENTERS UNDER
WRITING THE GENOMIC RESOURCE.
THIS SPEAKS TO THE NIH'S
CONFIDENCE IN NLM'S ABILITY TO
DELIVER ON THESE COMPLEX
RESOURCES.
THE FIRST THING I WANT TO SAY IS
THIS A TRIBUTE TO OUR TEAM BEING
ABLE TO DELIVER.
IT'S HOURS OF PREPARATION AND
PRACTICE AND WHAT WILL WE TELL
THE BOARDS AND EXPLAIN AND HOW
MANY THINGS WE HAVE TO GO
THROUGH TO BUILD CAPACITY AND
BUILD INTEREST AND SUPPORT.
ONE OF THE MAJOR SELLING POINTS
HAS BEEN WE HAVE A CLOSE
RELATIONSHIP WITH OUR BOARD OF
REGENTS AND YOUR DEEP INVESTMENT
IN THE PROJECTS GOING FORWARD
HELP NIH ENSURE THEY'RE GETTING
APPROPRIATE OVERSIGHT AND MAKE
SURE WE ENGAGE WITH THE
COMMUNITY IN A WAY THAT HAS A
MEASURE OF DEPENDENCE AND THAT
WAS SOMETHING NIH HAD CONCERN
ABOUT SO THIS IS QUITE HELPFUL.
THERE'S OTHER PROJECTS THAT ARE
ALSO SUPPORTED THROUGH SEVERAL
FUNDS FROM THE NIH WE HAVE BEEN
ENTRUSTED WITH.
OUR DATA CENTER REPAIR AND
MODERNIZATION WHICH I SPOKE
BRIEFLY ABOUT EARLIER AS A
RESULT OF A $7 MILLION
INVESTMENT FROM THE CYBER
SECURITY INFRASTRUCTURE FUND.
AND PROVIDE THE OPEN SHIFT IN
SCIENCE THAT PETABYTES THAT IT
BRINGS TO THE WORLD REQUIRES
INVESTMENT FROM THE NIH EVERY
SINGLE YEAR.
MY BUDGETING STRATEGY IN PART
HAS TO BE GOOD STEWARDS OF THE
FUNDS GIVEN AND OUR DIVISION
DIRECTORS ARE EFFICIENT AT MAKE
SURE WE SPEND OUR FUNDS WELL AND
I TRY TO LEVERAGE THE
INVESTMENTS.
BECAUSE THESE STEP FUNCTION IN
IMPROVEMENTS AND THE
TECHNOLOGICAL INFRASTRUCTURE
WERE DRIVEN IN PART BY THE PLAN
FOR DATA DRIVEN DISCOVERY AND
THAT'S WHAT WE'RE DOING AND BY
THE CREATIVE THINKING OF OUR
STAFF.
I'M SEEING THIS AS A COMBINED
EFFORT FOR THOSE ENGAGED AND
OVERSEEING THE ACTIVITIES AND
THE BOARD OF REGENTS WHOSE INPUT
IS ESSENTIAL IN THIS PROCESS.
I'M HAPPY TO ANSWER ANY
QUESTIONS.
THANK YOU.
>> THANK YOU.
IT'S A HELPFUL STATEMENT FOR US
TO GO FORWARD WITH.
>> TROY FISTER IS HERE IN THE
ROOM WITH ME SO IF WE NEED TO
MOVE TO THE NEXT ITEM WE CAN GO
AHEAD AND DO THAT.
>> WE'RE A FEW MINUTES AHEAD OF
SCHEDULE SO I CAN GO AHEAD AND
INTRODUCE TROY FISTER TO
INTRODUCE THE NLM'S RACIAL AND
ETHNIC EQUITY PLAN DISCUSSION.
TROY, PLEASE PROCEED.
>> AS CHAIR OF THE COUNCIL, I'M
PLEASED TO INTRODUCE MY
COLLEAGUE MIRIAM TO TELL YOU
ABOUT OUR CURRENT EFFORTS TO
BUILD RACIAL AND ETHNIC EQUITY
AND I'D LIKE TO THANK MIRIAM FOR
STEPPING IN ON THE UNACCOMPANIED
CHILDREN FROM AFGHANISTAN AND
THE IDEA WHICH GREW FROM A
RECENT PRESIDENTIAL ORDER THE
FEDERAL GOVERNMENT MUST
STRENGTHEN THE ABILITY TO RETAIN
OUR NATION'S TALENT AND REMOVE
BARRIERS TO EQUAL OPPORTUNITY
AND DISMANTLE STRUCTURAL RACISM
AND FURTHER RACIAL INEQUITY IN
OUR ORGANIZATION.
THE IDEA COUNCIL HAS TAKEN UP
THE TASK OF DEVELOPING A RACIAL
AND ETHNIC EQUITY PLAN.
SO NOW HOPEFULLY MIRIAM'S READY
TO PROVIDE DETAILS HOW WE'RE
INVOLVING NLM STAFF MEMBERS OF
ALL BACKGROUNDS AND EXPERIENCE
LEVELS IN THIS IMPORTANT
INITIATIVE.
>> THANK YOU.
AND WOULD IT BE ALREADY IF I
SHARED FROM MY COMPUTER?
>> AND DO YOU SEE MY SLIDES.
>> YES.
>> WELL, THANK YOU FOR THAT
INTRODUCTION, TROY.
GOOD AFTERNOON, MY NAME IS
MIRIAM THE OPEN SCIENCE OFFICER
IN THE OFFICE OF STRATEGIC
INITIATIVES.
I'M EXCITED TO HAVE THE
OPPORTUNITY TO PRESENT NLM
STRATEGY ON REPAIRING OUR RACIAL
AND ETHNIC EQUITY PLAN OR THE
REEP FOR SHORT.
SO I'M EAGER TO HAVE THE CHANCE
TO GET YOUR FEEDBACK AND YOUR
INSIGHTS WHICH WILL BE
INVALUABLE IN HELPING US ADVANCE
THIS OVER THE PARTICULARLY GIVEN
THIS IS THE FIRST TIME AN NIH
INSTITUTE OR CENTER DEVELOPED AN
ETHNIC, RACIAL EQUITY PLAN.
AS I'M PRESENTING OUR WORK WE'D
LIKE TO KEEP SOME OF THESE
QUESTIONS IN MIND THOUGH I'LL
HAVE THE OPPORTUNITY TO DISCUSS
BEYOND THESE AS WELL.
I'M PRESENTING ON BEHALF OF THE
IDEA MEMBER.
I'VE BEEN SERVING AS ACTING
CHAIR AS HE WAS ON DETAIL.
WHILE THE PRESENTATION WILL
FOCUS ON RACIAL AND ETHNIC
EQUITY AND OUR APPROACH TO
ADVANCING THESE, THE COUNCIL
ALSO PLANS ON ADDRESSING
DIVERSITY, EQUITY, INCLUSION
MORE BROADLY AND THE CHARGE NOR
PLAN CAME THIS FALL FROM THE
UNITE INITIATIVE.
THE INITIATIVE IS IS COMPRISED
OF FIVE COMMITTEES WHICH
LAUNCHED IN MARCH OF 2021.
IT WAS ESTABLISHED TO IDENTIFY
AND ADDRESS STRUCTURAL RACISM
WITHIN THE NIH SUPPORTED AND
GREATER SCIENTIFIC COMMUNITY.
ESTABLISHING A PLAN TO ADVANCE
RACIAL AND ETHNIC EQUITY FOR
EACH NIH INSTITUTE OR CENTER WAS
A RECOMMENDATION DEVELOPED BY
THE "I" COMMITTEE HIGHLIGHTED IN
BLUE.
WHICH IS FOCUSSED ON I AM
PROVING THE INTERNAL CULTURE OF
THE NIH.
AND THE RECOMMENDATION WAS THEN
ADOPTED BY NIH LEADERSHIP IN THE
FALL AND NLM LEADERSHIP THEN
TASKED THE IDEA COUNCIL WITH
ESTABLISHING THE INFRASTRUCTURE
FOR AND ULTIMATELY DEVELOPING
THE PLAN FOR NLM.
SO BEFORE I GO INTO THE DETAILS
OF THE REEP AND OUR APPROACH TO
DEVELOPING THE PLAN, I FIRST
WANTED TO ESTABLISH WHAT WE MEAN
WHEN WE SAY EQUITY.
SO I'M GOING TO SHOW YOU A MODEL
DEVELOPED BY THE CENTER FOR
STORY BASED STRATEGY AND
INSTITUTE FOR SOCIAL CHANGE.
I'LL NOTE THAT ALL MODELS ARE
WRONG AS I'M SURE YOU WILL
APPRECIATE BUT GOOD MODELS ARE
USEFUL AND I THINK THIS ONE IS
REALLY NO EXCEPTION.
SO HERE WE HAVE THREE SPECTATORS
OBSERVING FROM OUTSIDE OF A
BASEBALL FIELD.
EQUALITY IS GIVING THEM ALL THE
SAME SIZED BOX TO OBSERVE THE
GAME WITHOUT RECOGNIZING THE
NEEDS.
EQUITY IS GIVING EVERYONE THE
RIGHT SIZED BOX AND TOOLS AND
RESOURCES THEY NEED TO SUCCEED
GIVEN THEY MAY HAVE DIFFERENT
STARTING PLACES AND CONTEXTS.
SO ACHIEVING RACIAL AND ETHNIC
EQUITY REQUIRES AN INTENTIONAL
AND SUSTAIN PRACTICE OF CHANGING
POLICIES, PRACTICES, SYSTEMS AND
STRUCTURES AND REALLY
PRIORITIZING MESHABLE --
MEASURABLE CHANGES IN THE LIVES
OF MEMBERS OF ETHNIC AND
MINORITY GROUPS AND NOT BEING
SKEWED BY RACE AND ETHNICITY.
STILL, SOME OF YOU MAY NOTICE
THAT THESE SPECTATORS HAVE
STRUCTURES THAT REQUIRE THEY BE
EQUIPPED WITH EQUITABLE TOOLS IN
THE FIRST PLACE.
AND SO WE HAVE HERE A THIRD BOX.
REMOVING THE BARRIER TO SHOW US
WHAT LIBERATION OR JUSTICE COULD
LOOK LIKE.
NOW, OUR RACIAL AND ETHNIC
EQUITY PLAN WON'T GET FENCE IN
THE BROADER SOCIETY BUT IN
CO-CREATING THIS PLAN WE'RE
ASKING NLM STAFF AND OUR
STAKEHOLDERS TO IMAGINE
STRATEGIES TO GET US CLOSER TO
ENSURING THAT EVERYONE FEELS
VALUE AND IS GIVEN THE
OPPORTUNITY TO SUCCEED AND IN SO
DOING PERHAPS WE SHORTEN THAT
FENCE BY A FEW INCHES OR FEET.
AND SO WITH THAT SAID, I WANTED
TO NOW INTRODUCE THE OVERARCHING
GOALS OF THE RACIAL AND ETHNIC
EQUITY PLAN.
THE FIRST BEING TO APPLY WHAT'S
CALLED THE RACIAL AND EQUITY
LENS OR REAL FRAMEWORK TO NLM'S
WORKFORCE, STRUCTURES AND
SYSTEMS.
AND SO I'LL PAUSE HERE FOR A
MOMENT TO ELABORATE ON THE REEL
SINCE IT'S FOUNDATION TO THE
PLAN'S DEVELOPMENT AND HAS GIVEN
US A LOT OF OPPORTUNITIES TO
THINK ABOUT HOW THIS PLAN COULD
TAKE SHAPE.
SO THERE'S A THEORY OF CHANGE
THAT RESTS ON SIX STRATEGIES
I'VE SHOWN HERE TAKEN IN
PARALLEL AND WE'RE EAGER TO
LEARN IF YOU ALL HAVE HAD ANY
EXPERIENCE OR SUCCESS
VACCINATION THE STRATEGIES AND
THEIR EFFECTS WITHIN YOUR
ORGANIZATION.
THE STRATEGIES CAN BE APPLIED AT
THE INDIVIDUAL INTERPERSONAL AND
INSTITUTIONAL LEVEL RECOGNIZING
CHANGE CAN ONLY HAPPEN THROUGH A
NETWORKED APPROACH WITH
COLLEAGUES INFLUENCING CHANGE
WITHIN THEIR OWN CIRCLES WITHIN
THEIR OWN RESPECTIVE PARTS OF
THIS LIBRARIES AND COLLEAGUES
WITH WHOM THEY HOLD INFLUENCE
AND THAT HAPPENS WITH STRONG
INSTITUTIONAL COMMITMENT TO
ADVANCE CHANGE AND ADVANCE
RACIAL AND ETHNIC EQUITY.
THE SECOND GOAL IS TO DISMANTLE
ANY ETHNIC OR RACIAL DISPARITIES
IN THE WORKFORCE AND THIRD IS TO
ENHANCE THE DIVERSITY OF OUR
WORKFORCE.
IN MEETING THE OVER ARCHING
GOALS WE'VE BEEN GIVEN THE
PRINCIPLES OF SUCCESS BY NIH
LEADERSHIP.
THE PLAN'S DEVELOPMENT SHOULD BE
GUIDE A COMMITMENT TO LEARNING
WHICH REQUIRES ACCOUNTABILITY
REPORTING OUR PROGRESS WITH
LONG-TERM AND SHORT-TERM
MEASURES AS WELL AS FLEXIBILITY
MAKING SURE WE'RE INCORPORATING
WHAT WE'RE LEARNING INTO
IMPLEMENT AND REFINING THE REEP
IN THE NEAR TERM AND THE LONG
TERM AS WE CONTINUE TO REVISIT
AND DEFINE THE REEP AND CONTINUE
TO MAKE PROGRESS IN THE SPACE.
ENSURING THE FLEXIBILITY AND
ACCOUNTABLE AND LEARNING
REQUIRES TIME, RESOURCES AND
COMMITMENTS FROM LEADERSHIP
WHICH WE'RE PLEASED TO HAVE THAT
STRONG COMMITMENTS MADE.
WITH THAT SAID WE CAN GO DEEPER
INTO THE REEP DEVELOPMENT
PROCESS AS WE LED IT HERE AT
NLM.
NOTING THIS IS AGAIN THE FIRST
TIME NIH INSTITUTE OR CENTER HAS
UNDERTAKEN THIS SORT OF ENDEAVOR
AND DOING SO UNDER AN URGENT AND
PRESSING TIME LINE WITH THE PLAN
DUE TO NIH LEADERSHIP APRIL 1.
WE BEGIN WITH THE ASSESSMENT
PHASE.
THE UNITE COMMITTEE FORMALLY
ANNOUNCE THE REEP EFFORT TO
POINT CONTACT ACROSS THE 27
INSTITUTES AND CENTERS IN MID
DECEMBER.
FROM THERE, THE NLM IDEA COUNCIL
IDENTIFIED THREE FOCUS AREAS FOR
ADVANCING RACIAL AND ETHNIC
EQUITY AT NLM AND CONDUCTED A
PRELIMINARY ANALYSIS IN
COLLABORATION WITH NLM
LEADERSHIP TO GIVE US A BETTER
PICTURE OF HOW WE'RE DOING IN
THE THREE AREAS.
SO THOSE AREAS ARE FIRST
UNDERSTANDING FACTORS
CONTRIBUTING TO RACIAL AND/OR
ETHNIC DISPARITIES.
THE SECOND IS TO INCREASE STAFF
AWARENESS AND UNDERSTANDING OF
STRUCTURAL RACISM AND THE THIRD
IS TO ENHANCE RACIAL AND ETHNIC
WORKFORCE DIVERSITY AND TO SEE
WHERE WE ARE IN RELATION TO
THESE THREE FOCUS AREAS.
WE TOOK ADVANTAGE OF DEMOGRAPHIC
DATA PROVIDED TO US BY THE NIH
OFFICE OF EQUITY, DIVERSITY AND
INCLUSION.
A FEDERAL EMPLOYEE VIEW POINT
SURVEY DATA FROM 2020 AS WELL AS
STAFF INPUT FROM FOUR FORUMS WE
HOSTED AFTER THE LAUNCH OF THE
UNITE INITIATIVE THIS PAST YEAR.
WE VERY MUCH APPRECIATE YOUR
THOUGHTS ON OTHER DATA SOURCES
THAT WE SHOULD BE LOOKING AT OR
KINDS OF DATA WE SHOULD BE
COLLECTING FOR FUTURE ITERATIONS
OF THE REEP GIVEN OUR FOCUS
AREAS.
AND SO WE'RE PARTICULARLY
INTERESTED IN YOUR THOUGHTS ON
DATA WE COULD BE LOOKING AT OR
DATA WE COULD BE COLLECTING
BECAUSE ONE OF OUR MAIN
TAKEAWAYS FROM THIS ASSESSMENT
EFFORT IS THAT WE HAVE A LOT
LEFT TO LEARN THAT THERE ARE --
WHILE WE HAVE QUAINT TATIVE DATA
ABOUT THE DIVERSITY OF THE
WORKFORCE WE DON'T HAVE
ACCOMPANYING QUALITATIVE DATA TO
GIVE US NUANCED EXPECTS ON STAFF
CHALLENGE AND MINDFUL GOING
FORWARD WE NEED TO BRING IN MORE
DATA AND MORE OPPORTUNITIES TO
SHARE THESE PERSPECTIVES AND
EXPERIENCES, TAKING CARE TO
CENTER THE PERSPECTIVES OF OUR
COLLEAGUES FROM RACIAL AND
ETHNIC MINORITY GROUPS.
THERE'S IMMEDIATE ACTION WE CAN
TAKE TO FILL THESE GAPS.
FOR INSTANCE, THROUGH VALIDATED
CULTURAL ASSESSMENTS AND HOSTING
FOCUS GROUPS.
IN ADDITION, WE SHOULD WORK TO
SET A ROBUST LEARNING AGENDA
WHICH IS A TERM THE IDEA COUNCIL
LEARNED FROM NLM STRATEGIC
EVALUATION OFFICER KIMBERLY
THOMAS AND THE IDEA IS TO HAVE
PRIORITY QUESTIONS AND
ACTIVITIES TO GUIDE OUR EVIDENCE
BUILDING AND DECISION MAKING.
SPECIFICALLY RELATED TO
ADVANCING RACIAL AND ETHNIC
ACTIVITY AT NLM AND THE
COMPLETION OF THAT PRELIMINARY
ASSESSMENT BRINGS US INTO OUR
DESIGNED PHASED.
AS WE WERE UNDERTAKING OUR
ANALYSIS, WE WERE ALSO
ESTABLISHING THE INFRASTRUCTURE
FOR ACTUALLY DESIGNING THE PLAN
WHICH ENTAILS IDENTIFYING AND
PRIORITIZING ACTIONS TO ADVANCE
RACIAL AND ETHNIC EQUITY IN OUR
THREE FOCUS AREAS AND DEVELOPING
ACCOMPANYING METRICS FOR THESE
ACTIONS TO ASSESS OUR PROGRESS
AND HOLD US ACCOUNTABLE TO
MEETING THOSE GOALS.
IN EARLY JANUARY, THE IDEA
COUNCIL ISSUED A CALL FOR
VOLUNTEERS ACROSS THE LIBRARY TO
HELP US TAKE ON THE TASK AND
ALSO GAVE STAFF AN OPPORTUNITY
TO SHARE THEIR IDEAS MORE
INFORMALLY WITH US ON JUST
THROUGH E-MAIL.
AND SO WE'RE REALLY GRATEFUL
THAT THE DESIGN PROCESS WILL
BENEFIT FROM A DIVERSITY OF
EXPERIENCES AND PERSPECTIVES
FROM 26 VOLUNTEERS SHOWN HERE
ALL HAILING FROM VARIOUS PARTS
OF THE LIBRARY HOLDING VARIOUS
ROLES AT A VARIETY OF STAGES IN
THEIR CAREERS.
AS THEY WORK TO DESIGN THE REEP,
THEY WILL BE ACTING ALSO AS
CONNECTERS AND AMBASSADORS
ACROSS THE LIBRARY SOCIALIZING
THE PROCESS THAT WE'RE TAKING TO
DEVELOP A PLAN THAT WILL ADVANCE
RACIAL AND ETHNIC EQUITY AND
REALLY ACTING AS SPARKS OF
CHANGE TO ADVANCE THIS CAUSE.
AGAIN, RECOGNIZING THAT WE NEED
TO BE TAKING A NETWORKED
APPROACH FOR CULTURE CHANGE
WHILE WE HAVE COMMITMENTS TO
ADVANCE AND MOVE FORWARD IN THIS
SPACE.
SOW -- SO THE TIME LINE IS
DESIGNED HERE WITH THE MARKERS
IN GREEN.
AND LAST WEEK WE HOST OUR
KICKOFF MEETING WITH THE DESIGN
COMMITTEES WHO WILL NOW SPEND
THE MONTH OF FEBRUARY DRAFTING
ACTIONS AND ASSOCIATED METRICS
TO ADVANCE RACIAL AND ETHNIC
EQUITY AND MEASURE OUR PROGRESS
AGAIN IN THOSE AREAS.
IN MARCH, THE IDEA COUNCIL WILL
TAKE THEIR OUTPUTS AND
SYNTHESIZE THEM INTO A MORE
STREAM LINED DOCUMENT IN
COLLABORATION WITH NLM
LEADERSHIP AND THE DESIGN
COMMITTEES AND THE FINAL PLAN IS
DUE TO NIH LEADERSHIP APRIL 1.
FOLLOWING NIH APPROVAL, WE'LL
THEN MOVE INTO THE
IMPLEMENTATION PHASE PUTTING
THOSE ACTIONS INTO PRACTICE AND
TRACKING OUR PROGRESS USING THE
IDENTIFIED METRICS FROM THE
DESIGN COMMITTEES.
AT THE END OF THE FIRST YEAR
FROM THE PLAN'S APPROVAL, WE
PLAN TO TAKE A FORMAL REPORTING
EFFORT, REVISITING OUR PLAN
GOING BACK INTO THAT ASSESSMENT
PHASE AND REFINING IT AS
NECESSARY AFTER THAT FIRST YEAR.
SO WITH ALL OF THAT SAID WITH
THAT WHIRLWIND TOUR THROUGH THAT
PROCESS, WE WANT TO HEAR FROM
YOU.
WHAT DO YOU SEE AS OPPORTUNITIES
FOR IMMEDIATE ACTION WE CAN
TAKE?
WHAT SHOULD BE ON OUR LEARNING
AGENDA WITH RESPECT TO RACIAL
AND ETHNIC EQUITY?
WHAT WOULD BE INEFFECTIVE IN
ADVANCING THE CHARGE.
WHAT ARE WE MISSING.
WITH THAT WE WOULD LOVE TO HEAD
INTO THE DISCUSSION PORTION AND
I CAN LEAVE THE SLIDES UP IF
THEY'RE HELPFUL OR TAKE THEM
DOWN SO WE CAN DISCUSS A MORE
FACE TO FACE DISCUSSION.
>> THANK YOU.
I'M CAUTIOUSLY OPTIMISTIC AND
THIS WILL TAKE ACTION AND THAT'S
A THEME I'D LIKE TO TALK A
LITTLE BIT ABOUT PERHAPS, I'LL
MAKE A COMMENT OR SO AND WOULD
LIKE TO OPEN IT UP TO THE OTHERS
IN THE GROUP WHO CERTAINLY SHARE
EXPERIENCE AND THOUGHTS TO
CONTRIBUTE.
FIRST OF ALL I KNOW IT'S EARLY
IN THE PARTICULAR EFFORT TO
DEVELOP THE REEP FOR NLM BUT I
DO HAVE A QUESTION THAT I'M
HOPING MAYBE YOU OR SOME OF THE
GROUP CAN RESPOND TO WHICH IS
AROUND THE FOUNDATIONAL
FRAMEWORK AND SPECIFIES THE SIX
STRATEGIES AND LEVELS OF
INFLUENCE AND ONE OF THE THINGS
I'M WONDERING IS IF YOU OR
OTHERS HAVE THOUGHTS ABOUT HOW
STATUS AND PROGRESS IN EACH OF
THOSE LEVELS MIGHT BE MEASURED
AND WHAT THE MECHANISMS FOR
ACCOUNTABILITY FOR PROGRESS
MIGHT BE.
I UNDERSTAND YOU'RE IN THE
PLANNING PHASE AND THERE'S
IMPLEMENTATION AND REPORTING
PHASE FOLLOWING THAT.
I THINK THE RISK IN ANY OF THESE
AREAS IS A TREMENDOUS AMOUNT OF
TIME TRYING TO COME UP WITH A
PERFECT PLAN THOUGH I'M NOT
SUGGESTING YOU THINK YOUR PLAN
IS PERFECT.
NO PLAN'S PERFECT BUT BEING ABLE
TO ACTUALLY HAVE WHAT YOUR
PLANNING TO ACCOMPLISH VERY
DISCREETLY AND SPECIFICALLY SO
IN THE FRAMEWORK OF EQUITY BY
DESIGN WHAT ARE THE VERY
SPECIFIC CLEAR GOALS AND
MEASURES THAT YOUR PLAN IS GOING
TO SUPPORT IN THINKING ABOUT
THOSE SOONER RATHER THAN LATER.
SO LET ME PAUSE MY COMMENT THERE
AND JUST SEE IF YOU HAVE GIVEN
THOUGHT WITH THE MEASUREMENT AND
ACCOUNTABILITY ASPECTS OF THAT
REAL FRAMEWORK.
>> I'LL HOLD UP THE SLIDE IN
CASE IT'S HELPFUL FOR YOU TO
HAVE A LOOK.
THE FIRST TWO OF THE THINGS THAT
WE HAVE REALLY TAKEN TO HEART IN
EVEN THINKING ABOUT HOW OUR
APPROACH TO ASSEMBLING THESE
DESIGN COMMITTEES IS THIS IDEA
OF DEVELOPING CHANGE ADVOCATES
AND ALSO ENCOURAGING
TRANSPARENCY IN OUR PROCESSES,
POLICIES AND PRACTICES TO
FACILITATE TRUST.
AND SO WE WERE REALLY
INTENTIONAL AS WE WERE
ASSEMBLING THESE COMMITTEES IN
REACHING OUT TO PEOPLE WHO WERE
CONNECTERS ACROSS THE LIBRARY.
SO THIS IS SOMETHING THAT WAS
REALLY HELPED ALONG BY THE IDEA
COUNCIL REACHING OUTS TO PEOPLE
THAT WE KNEW HAD GREAT NETWORKS
ACROSS THE LIBRARY AND WOULD BE
ABLE TO HELP US SOCIALIZE THE
CONCEPTS JUST THE NEED THAT WE
NEED TO TAKE ACTIONS HELPING TO
SOCIALIZE THAT IS KIND OF THE
BASE LEVEL FROM WHICH WE NEED TO
BE OPERATING AT THE
INTRAPERSONAL LEVEL AND THEN
HAVING THAT SPARKS OF CHANGE
THAT TRICKLE OUT.
THEN ALSO BEING TRANSPARENT
ABOUT OUR PROCESS GOING FORWARD.
SO WE HAVE A WIKI PAGE DEVELOPED
THAT OUTLINES THE PROCESS WE'RE
TAKING.
OUR TIME LINE, CHECK POINTS,
MAKING SURE THAT WE'RE USING
NLM'S EXISTING COMMUNICATION
CHANNELS BY BROADCAST E-MAILS SO
WE'RE REALLY I THINK SOMETHING
WE HAVE HEARD BOTH THROUGH
LISTENING SESSIONS CONDUCTED BY
THE UNITE COMMITTEES AND ALSO
JUST CHATTER AMONG STAFF IS
WE'VE BEEN HERE BEFORE AND SO
WHAT'S DIFFERENT NOW?
SO REALLY TAKING STEPS TO
SOCIALIZE EXACTLY WHAT IT IS
WE'RE DOING AND CHECK IN EVEN IF
IT'S TO SAY WE'RE STILL WORK ON
THE DESIGN OF THIS SO THAT STAFF
KNOW THAT WE'RE CONTINUING TO
PLUG ALONG IN DEVELOPING THIS.
IN TERMS OF MEASURES THAT WE ARE
USING, WE ARE REALLY FORTUNATE
TO HAVE THE EXPERTISE THAT
PEOPLE LIKE MY COLLEAGUE
KIMBERLY THOMAS WHO THINK A LOT
OF AND THINK DEEPLY ABOUT
EVALUATION AND WHAT METRICS ARE
USEFUL.
DURING OUR KICKOFF MEETING SHE
WAS GENEROUS TO TAKE TIME TO
PRESENT ON WHAT IS EVALUATION
AND WHY IS IT IMPORTANT IN
MAKING SURE THE ACTIONS OF WHAT
WE ARE PROPOSING ARE INTENTIONAL
AND MEASURABLE TO CONTINUE TO
SEE HOW WE'RE DOING?
IS THIS SUCCESSFUL AND DO WE
NEED TO REVAMP?
SHE PUT TOGETHER A ROAD MAP FOR
OUR COMMITTEES TO THINK THROUGH
HOW DO THESE ACTIONS TRANSLATE
INTO THINGS THAT ARE ACTUALLY
MEASURABLE OR TANGIBLE AND SO WE
HAVEN'T QUITE GOTTEN TO THAT
SORT OF METRICS PART YET BUT
HAVE BEEN CAREFUL TO SORT OF SEW
THOSE SEEDS AMONG OUR REEP
DESIGN COMMITTEE MEMBERS SO
WE'RE THINKING ABOUT EVALUATION
RIGHT UP FRONT RATHER AT THE END
OF OUR FIRST YEAR WHEN WE'RE
WONDERING HOW WE'RE GOING
MEASURE WHETHER WE WERE ACTUALLY
EFFECTIVE OR NOT.
I HOPE THAT ANSWERS YOUR
QUESTION.
>> YOU HAVE A BIG JOB AHEAD OF
YOU BUT IT'S REALLY EXCITING TO
SEE THIS.
REALLY WELL PLANNED OUT.
I HAVE A COUPLE THOUGHTS IN
LISTENING TO YOU AND EXCITED TO
HEAR THAT YOU'RE EVALUATION
OFFICER I THINK KIMBERLY YOU
SAID HER NAME WAS, WILL HELP YOU
THROUGH THE PROCESS.
I HAVE A LITTLE BIT OF
EXPERIENCE IN WORKING WITH THE
LEARNING AGENDA.
WE USED AN SF IN A PROCESS
CALLED RENEWING NSF AND IT'S A
HAVE ALL VALUABLE TOOL BUT
DAUNTING BECAUSE YOU'RE GETTING
PEOPLE TO JUMP IN THE PROJECT OR
ACTIVITY.
IT'S GOOD TO HEAR YOU HAVE
KIMBERLY HELPING YOU ON THAT.
IF YOU DON'T, THINK ABOUT
GETTING A FACILITATOR, SOMEONE
THAT CAN JUMP IN AND KNOWS THE
LEARNING AGENDA AND CAN DO THIS
AND TAKE YOU THROUGH IT.
WE PULLED IN FACILITATORS FOR
NSN WORK AND IT WAS
EXTRAORDINARILY VALUABLE TO HAVE
THEM BECAUSE THEY CAN TAKE YOU
THROUGH THE PROCESS AND HELP YOU
SORT THROUGH THE GINORMOUS
AMOUNT OF INFORMATION YOU'LL GET
FROM THESE ACTIVITIES AND HELP
SORT WITH THAT.
ANOTHER THING THAT CAME UP AS A
WAS LIG JENS A -- AND THERE'S
SOME TENSIONS THAT WE SORT OF
EXPERIENCED WAS RELIEVED BY
BRINGING IN AN EXTERNAL
FACILITATOR TO HAVE THE
CONVERSATIONS AND THEY'RE HARD
CONVERSATION TO HAVE AND COLLECT
THE DATA YOU NEED TO GET BACK IN
THE PROCESS.
THOSE FOLKS ARE VALUABLE TO
HAVE.
SO I WAS WONDERING, COULD I
ELABORATE MORE IN WHAT YOUR
THINK IN THAT SPACE AS FAR AS
HOW YOU PLAN ON DOING THOSE
CONVERSATIONS.
>> YEAH, THANK YOU FOR RAISING
THAT QUESTION.
IT'S SOMETHING WE THOUGHT A BIT
ABOUT NEEDING SUPPORT FROM
PEOPLE OUTSIDE THAT AREN'T
NECESSARILY US.
AND SOME GAPS IN THE DATA WE
HAVE MIGHT COME FROM PLACE OF
NOT NECESSARILY EARNING THE
RIGHT TO HEARING THE EXPERIENCES
IF THAT MAKES SENSE BECAUSE
THEY'RE HARD TO SHARE AND IF
THERE ISN'T PROOF THAT SOMETHING
IS ACTUALLY GOING TO TANGIBLY
HAPPEN BECAUSE OF TAKING THE
TIME TO SHARE SO I ALWAYS THINK
STORIES AS SOMETHING WE NEED TO
EARN BUT NOT READILY GIVEN.
HOW CAN WE FROM THE NLM STAFF
LEVEL BE EARNING THOSE STORIES
AND HEARING THOSE EXPERIENCES
AND HOW CAN WE ALSO BRING PEOPLE
WHO ARE TRAINED FACILITATORS AND
BE MORE TRUSTED BECAUSE THEY'RE
FROM OUTSIDE AND NOT FROM WITHIN
TO HEAR SOME OF THOSE STORIES.
AND I THINK THIS IS SOMETHING
THAT I'M MINDFUL OF BECAUSE I'M
PASSIONATE ABOUT EQUITY,
INCLUSION AND ACCESSIBILITY, MY
BACKGROUND SIN MOLECULAR BIOLOGY
AND THERE ARE PEOPLE TRAINED IN
BEHAVIORAL AND SOCIAL SCIENCE
RESEARCH TRAINED IN CHANGE
MANAGEMENT WHO I THINK HAVE A
LOT OF WISDOM AND EXPERTISE IN
RUNNING THOSE SESSIONS AND EARN
THOSE EXPERIENCES AND HELPING US
MOVE INTO ACTION.
YOUR POINT IS WELL TAKEN THAT
SUPPORT IN EXPERTISE WILL BE
NEEDED TO ADVANCE THIS FORWARD.
>> IF YOU NEED, I HAVE
CONNECTIONS AT NSF WHERE WE USED
THE FACILITATORS MAYBE SOMETHING
WE CAN CHAT ABOUT OFFLINE PUT
YOU IN TOUCH WITH PEOPLE WE
KNOW.
>> THAT WOULD BE FANTASTIC AND
THE IDEA MEMBERS, FEEL FREE TO
CHIME IN.
IT'S A COLLABORATIVE EFFORT.
SO SINCE THE TIME LINE IS SO
TIGHT, HOW MUCH OPPORTUNITY DO
YOU HAVE TO TALK AMONG THE I.C.s
AND LESSONS LEARNED AND HOW
THEY'RE DEVELOPING AT EACH I.C.?
>> THAT'S A GREAT QUESTION AS
WELL.
WE HAVE THE COORDINATOR GOING TO
START HOSPIT HOSTING BIWEEKLY MEETINGS
AND WE HAVE A CHANNEL WHICH
HASN'T BEEN UTILIZED AND OUR
TEAMS CHANNEL IS STARTING TO
BUZZ QUITE NICELY.
SO I THINK THAT WILL BE AN
OPPORTUNITY BECAUSE THIS IS OUR
APPROACH -- THERE'S PROBABLY 26
OTHER DIFFERENT APPROACHES AND
SO GETTING TO HEAR SO THAT THE
NEXT TIME WE -- AS WE MOVE INTO
IMPLEMENTATION AND CYCLE BACK TO
ASSESSMENT OR LEARNING FROM EACH
OTHER'S EXPERIENCES, WE ALSO
HAVE SOME AT THE NIH LEVEL
CONSULTING SUPPORT FROM DOCTOR
STEWART WHO EACH I.C. HAS 15
HOURS WITH HIM.
SO WE'VE MET AND WILL BE
BRINGING HIM IN AND TOLD OUR
DESIGN COMMITTEES IF THEY'D LIKE
TO SPEAK WITH HIM, THAT HIS
EXPERTISE WOULD BE AVAILABLE.
>> THAT'S GREAT.
THANK YOU.
THAT'S HELPFUL.
>> I HAVE A QUESTION IN TERMS OF
NLM'S DIFFERENCE FROM THE OTHER
I.C.s AND HOW MUCH THAT AFFECTS
YOUR PLANNING AND YOUR
DISCUSSIONS COME.
IS THERE MUCH ABOUT THE
DIFFERENT NATURE OF THE
WORKFORCES AMONGST THE I.C.s AND
HOW THAT FACTORS IN YOUR WORK?
>> TO BE HONEST, WE HAVEN'T HAD
THE OPPORTUNITY TO SHARE IN THAT
WAY WITH OTHER I.C.s SO I AM NOT
FAMILIAR WITH THE OTHER
COMPOSITIONS OR MAKEUPS OF THE
DIFFERENT I.C.s.
I DO KNOW THAT WE HAVE NIH WIDE
DATA ON WORKFORCE AND I THINK
THAT NLM IS PRETTY INLINE IN
THAT RESPECT BUT THERE HASN'T
BEEN AN NIH WIDE RACIAL AND
ETHNIC PLAN AND THAT'S SOMETHING
I'M CURIOUS ABOUT.
WE HAVE OUR FIRST COMMUNITY OF
PRACTICE MEETING NEXT WEEK AND
SO SOMETHING THAT I WILL
DEFINITELY LOOK OUT FOR.
>> MAYBE YOU CAN BRING UP YOUR
QUESTION SLIDES AGAIN AND
HOPEFULLY FOLKS CAN GIVE THOUGHT
TO SOME OF THOSE QUESTIONS.
>> I SEE A NUMBER OF COMMENTS IN
THE CHAT TOO BUT HAVEN'T QUITE
BEEN ABLE TO MONITOR IT.
>> IF FOLKS HAVE IDEAS OR
THOUGHTS, COULD YOU RAISE YOUR
HAND AND WE CAN -- LOURDES, DO
YOU WANT TO GO AHEAD?
>> SURE.
I WAS CURIOUS ABOUT THE ASPECTS
THAT YOU MENTIONED RELATED TO
NARRATIVE AND STORY TELLING.
AND THAT'S BECAUSE I THINK THAT
UNDER REPRESENTED MINORITY
EXPERIENCES ARE SOMETIMES VERY
UNIQUE AND OTHER FOLKS DON'T
NECESSARILY HAVE HAD THOSE
EXPERIENCES AND SO YOU KNOW THE
KINDS OF QUESTIONS PEOPLE MIGHT
ASK MAY BE DIFFERENT.
I WANTED TO SEE WHAT ARE SOME OF
THE TYPES OF THINGS THAT YOU ARE
THINKING ABOUT AND HOW YOU'RE
GOING TO GO ABOUT DEVELOPING
THAT IN ORDER TO REALLY MEET
SOME OF THE NEEDS THAT MIGHT
EXIST.
THANKS FOR THAT QUESTION AND
STORY TELLING AND MESSAGING IS
SOMETHING THAT IS PERSONALLY
SOMETHING THAT I'M PASSIONATE
ABOUT.
I COMPLETELY AGREE THAT
SOMETIMES A DANGER THAT WE CAN
RUN INTO WHEN ENGAGING IN THIS
SORT OF WORK IS SORT OF
COLLAPSING THE DIVERSITY WITHIN
THESE COMMUNITIES AND THINKING
THAT THERE IS SORT OF ONE
NARRATIVE TO RULE ALL MINORITY
AND FAILING TO RECOGNIZE THERE'S
A HUGE AMOUNT OF DIVERSITY
WITHIN RACIAL AND ETHNIC
MINORITY GROUPS THAT MY
EXPERIENCES AS AN IRANIAN
AMERICAN WOULD BE VERY DIFFERENT
THAN THE EXPERIENCES OF ANOTHER
IRANIAN AMERICAN OR SOMEBODY WHO
IS BLACK FROM AMERICA VERSUS
IMMIGRANTS FROM OTHER COUNTRIES.
I THINK WE HAVEN'T NECESSARILY
GIVEN THOUGHT TO LIKE WHAT IS
THE STORY THAT WE'RE GOING TO
TELL BECAUSE I DON'T THINK THERE
IS GOING TO BE THIS ONE
NARRATIVE.
AND SO WE CAN PAY ATTENTION IF
WE RUN FOCUS GROUPS DURING THE
IMPLEMENTATION PHASE WHEN WE
MOVE TO THE IMPLEMENTATION
PHASE.
I'M THINK WHAT ARE THEMES THAT
ARE COMING OUT OF THERE AND
TRYING TO USE THOSE TO MESSAGE
WHY IT'S IMPORTANT TO CHANGE OUR
BEHAVIORS IN CERTAIN WAYS.
I THINK IT'S VERY AT THIS STAGE
NEBULOUS AND I HESITATE TO
PROTECT MY OWN EXPERIENCES ON TO
A STORY WE COULD TELL OR STORIES
WE CAN TELL BECAUSE I DON'T
THINK THEY CAN SPEAK FOR
EVERYBODY AND IT'S ANOTHER
REASON THAT I'M OPTIMISTIC ABOUT
OUR EFFORTS IN THIS SPACE
BECAUSE ON OUR REEP DESIGN
COMMITTEES, WE HAVE 26 DIFFERENT
STORIES AND EXPERIENCES THAT
WILL BE SORT OF WOVEN INTO THE
DESIGN OF OUR PLAN MOVING
FORWARD AND WHEN WE MOVE INTO
IMPLEMENTATION WE PLAN TO HAVE
IMPLEMENTATION COMMITTEES AND
THERE'S AN OPPORTUNITY FOR THEIR
STOR
STORIES TO ALSO BE WOVEN IN AND
IT'S SOMETHING I'M MINDFUL
BECAUSE EVERYBODY'S STORY IS A
GIFT AND WE'RE TELLING IT WELL
AND TELLING IT IN A WAY THAT
WILL INFLUENCE CHANGE.
>> I'M IMPRESSED WITH THE
BREADTH.
I MAY HAVE MISSED IT IN THE GET
BEGINNING BUT THERE'S THINGS AT
THE NIH AS A WHOLE --
>> EXCUSE ME, JIM.
I'M HAVING A HARD TIME HEARING
YOU.
>> IF I SIT CLOSER DOES THAT
WORK?
>> MAYBE OTHERS ARE HEARING FINE
BUT I'M HAVING DIFFICULTY
HEARING.
>> HE'S BEEN HARD TO HEAR ALL
DAY.
>> IS THAT BETTER?
>> YES, YAY!
>> SO I MAY HAVE MISSED SOME OF
THE DETAILS EARLIER IN THE
PRESENTATION OR FORGOTTEN
BECAUSE THERE WAS SO MUCH
INFORMATION BUT NIH HAS A NUMBER
OF TERMS THAT REPLICATING WHAT
YOU'RE DOING MAY DOVE TAIL INTO
SOME OF YOUR SOLUTIONS I'M
THINKING ABOUT THINGS LIKE THE
CHILDCARE BOARD AND THINGS LIKE
THAT TO PROVIDE RESOURCES FOR
YOU TO ADDRESS SOME OF THE
EQUITY ISSUES THAT YOU'RE GOING
TO CONFRONT IN PROVIDING EQUITY
AND I KNOW CHILDCARE BOARD MAY
BE ONE THING THAT'S USEFUL.
>> IT THANKS FOR RAISING THAT.
SOMETHING I NEGLECTED TO SAY IS
THAT PART OF THE PLAN
DEVELOPMENT PROCESS AND WHAT
WE'RE ASKING OUR DESIGN
COMMITTEES TO DO IS NOT ONLY
DEVELOP ACTIONS AND MEASURES AND
TO IDENTIFY PEOPLE WE CAN
PARTNER WITH OR RESOURCES WE CAN
TAP INTO TO IMPLEMENT DOWN THE
LINE.
AND SO THIS IS SOMETHING THAT
THE IDEA COUNCIL IS SORT OF A
RESOURCE FOR OUR DESIGN
COMMITTEES CAN TAP INTO AND MAKE
AVAILABLE TO THOSE SO THAT'S A
REALLY GREAT SUGGESTION AND WE
CAN WORK ON TRYING TO COMPILE
THOSE SORTS OF RESOURCES SO THAT
THEY HAVE THEY CAN CHOOSE FROM A
MENU OF POTENTIAL PARTNERS.
>> HEIDI, YOUR HAND'S UP.
>> I WAS THINKING ABOUT THE
EARLIER DISCUSSION WITH THE LACK
MUCH DIVERSITY IN THE INTRAMURAL
FACULTY WHICH IS DIFFICULT TO
CHANGE RAPIDLY OBVIOUSLY.
IN SOME WAYS TO RAPIDLY CHANGE
CULTURE IS TO BRING IN MORE
JUNIOR PEOPLE LIKE SUMMER
INTERNSHIPS WITH DIVERSITY OF
INDIVIDUAL
INDIVIDUALS AND PARTICULARLY
INTERNSHIP TERMS WHERE THERE'S
AN OPPORTUNITY TO MENTOR
INDIVIDUALS OF DIVERSE
BACKGROUND.
IS THAT ON THE ROAD MAP FOR NLM
AND SPECIFICALLY THINKING WITH
THE MENTORSHIP ENVIRONMENT IN
THE INTRAMURAL PROGRAM WHERE
THERE'S A LACK OF DIVERSITY
SPECIFICALLY.
>> I THINK SO AND PERHAPS MY
COLLEAGUE DAVID LANDSMAN OR CAP
DUNN CAN SPEAK MORE TO SPECIFIC
OPPORTUNITIES.
IN ADDITION TO RECRUITING, WE
NEED TO BE MINDFUL THAT WE ARE
BRING PEOPLE INTO AN ENVIRONMENT
THAT MAY INCLUDE HERE AND VALUE
THEM.
I THINK THESE ARE THINGS THAT
NEED TO HAPPEN IN TANDEM SO WE
ARE AN ATTRACTIVE PLACE TO WORK
AND KNOWN FOR HAVING A CULTURE
THAT IS INCLUSIVE AND WHERE
THEY'LL HAVE THEIR EXPERIENCE OR
VOICES, PERSPECTIVES, SCIENTIFIC
CONTRIBUTIONS VALUED.
SO I DON'T KNOW IF DAVID OR
KATHOL HAD ANYTHING TO ADD BUT
YOU'RE MORE KNOWLEDGEABLE IN
THIS SPACE.
>> I CAN TALK ABOUT THE TERMS
GOING ON IN THE INTRAMURAL
PROGRAM ACROSS THE NIH.
I THINK THEY ACKNOWLEDGE THIS AS
AN ISSUE SEVERAL YEARS AGO
ACTUALLY AND HAVE BEEN TRYING TO
MAKE ADJUSTMENTS OR CREATE NEW
ENVIRONMENTS TO COME ON AND SO I
THINK THESE THINGS ARE ONGOING
BUT AS YOU SAY, THEY'RE SLOW
MOVING AN WILL TAKE A WHILE TO
HAVE AN EFFECT.
THEY DID MAKE AN EFFECT ON
HIRING TENURE TRACK
INVESTIGATORS AND THE DATA YOU
GET TO BE A TENURED INVESTIGATOR
WHICH IS GOOD AND THE NUMBERS
ARE INCREASING BUT THEN WHEN YOU
GET TO SEE HOW MANY WOMEN ARE
BRANCH CHIEFS THE WHOLE THING
FALLS A PART.
AND SO THERE'S SOME INHIBITORY
PROCESS HAPPENING BETWEEN
GETTING TENURE AND BECOMING A
BRANCH CHIEF WHICH IS
UNFORTUNATE.
THEY DO HAVE -- THEY HAVE NEW
PROTOCOLS FOR BRANCH CHIEFS NOW
WHICH INCLUDES TERM LIMITS.
I THINK IT'S TWO OR MAYBE
THREE -- I THINK TWO FIVE-YEAR
TERMS.
SO FOR SOME THAT'S RELATIVELY
RECENT IN THE PAST 18 MONTHS.
SO THERE'S SOME MOVEMENT BUT IT
IS SLOW.
>> I CAN SPEAK SOMEWHAT TO THE
LIBRARY WORLD THE NLM HOSTS A
PROGRAM FOR ASSOCIATE FELLOWS,
EARLY CAREER LIBRARIANS AND
WE'VE HAD SUCCESS IN BRINGING IN
DIVERSITY FOR UNDER REPRESENTED
POPULATIONS AND PARTS OF THE
COUNTRY AND PROFESSIONAL REMAINS
PRIMARILY FEMALE AND PRIMARILY
WHITE AND WE DON'T HAVE RECENT
DATA TO GUIDE US PARTICULARLY.
IT'S SOMETHING THAT WE'RE AWARE
OF AND ON OUR RADAR AND BENEFIT
BY HAVING EARLY YEAR LIBRARIANS
INFORM US ON WHAT THEIR WORLD
LOOK S LIKE AND WHAT WE NEED TO
KNOW FOR THE IMMEDIATE AND
LONG-TERM FUTURE.
>> JOE.
>> IN V.A. WE'VE BEEN EXPLORING
THESE CONCEPTS FOR SEVERAL YEARS
AND THE IMPORTANT THING FOR
CHANGE IS CONVERSATION.
WE'VE BEEN DOING FACILITATED
CONVERSATIONS AMONG OUR SENIOR
LEADERSHIP.
THEY'RE SOMETIMES CALLED CRUCIAL
CONVERSATIONS OFTEN PUT AROUND
READINGS AND I'VE PUT THEM IN
THE CHAT.
ONE THING UNIQUE TO MILITARY
CULTURE IS THERE ARE A LOT OF
MONUMENTS AND A LOT OF PLACES
NAMED FOR CONFEDERATE GENERALS
AND THERE'S A HISTORICAL PROCESS
THAT UNDER LIES THAT AND ONE OF
THE MOST EYE OPENING BOOK WAS
THE ONE CALLED RACE AND REUNION
WHICH WAS DONE IN THE EARLY
2000s TO BEFORE THE CURRENT
RANCOROUS DISCUSSIONS BUT VERY
NICELY DONE AND SO MANY PEOPLE
THAT PARTICIPATED IN THAT
INCLUDING FORMER MILITARY FOUND
IT EYE OPENING AND ALMOST SOME
GRIEVING ABOUT THE HERITAGE AND
ULTIMATELY IT'S THE CONVERSATION
THAT MATTERS MOST.
GOOD LUCK.
>> THANK YOU AND A TAKE THAT
VERY MUCH TO HEART AND WHY WE'VE
BEEN TRYING TO ENGAGE STAFF
ACROSS THE LIBRARY RECOGNIZING
THAT CONVERSATIONS THAT HAVE
HAPPEN ORGANICALLY CAN BE
POWERFUL WHEN IT'S COMING FROM A
PEER OR SOMEBODY WHO YOU WORK
WITH EVERY DAY AND SHARE VALUES
WITH SINCE THESE ARE REALLY THE
PEOPLE WHO HELP US FORM OUR
BELIEFS ABOUT THE WORLD.
AND SO I THINK THAT KIND OF
NETWORKED APPROACH HAVING THE
CORNERS OF THE LIBRARY THINKING
ABOUT WHAT RACIAL AND ETHNIC
EQUITY LOOKS LIKE AND WHAT WE
CAN DO AND HAVING CONVERSATIONS
AROUND THAT AND HAVING
OPPORTUNITIES TO HAVE THAT FEED
INTO WHAT THE REEP LOOKS LIKE
WILL BE VALUABLE AND I'M GLAD TO
HEAR IT'S WORKED WELL IN YOUR
EXPERIENCE THESE CONVERSATIONS.
>> ARE THERE OTHERS THAT HAVE
THOUGHTS ON POTENTIALLY
IMMEDIATE OPPORTUNITIES NLM CAN
MAKE ADVANTAGE OF?
>> I'VE GOT ONE THAT'S A LITTLE
BIT OF A PIVOT.
SO THE DISCUSSIONS AND THE
LEARNING AND INTERNAL WORK THAT
ARE BEING UNDERTAKEN ARE
CRITICAL AND AS DAVID SAID THE
WORKFORCE CHANGE AND CULTURE
CHANGE, THOSE KINDS OF THINGS
CAN BE SLOW MOVING AS WELL AS
DIFFICULT.
I WAS THINKING ABOUT SOME OF THE
EXTERNAL PERCEPTION
OPPORTUNITIES.
HOW DOES NLM BECOME AN AGENT OF
CHANGE THROUGH THE PRODUCTS YOU
PRODUCE AND SO THIS MAY BE A BIT
OUT OF SCOPE FOR YOUR THREE
FOCUS AREAS BUT ONE IS LOOKING
AT EQUITY AND INCLUSION AND
PRESENT AN OPPORTUNITY TO BE
LEADING IN AN AREA WOULD BE TO
AND INTERSECTING WITH THE WORK
PART OF THE CLINICALTRIALS.gov
MODERNIZATION OPPORTUNITIES OR
INITIATIVE.
AND THAT WOULD BE TO INCLUDE A
SECTION IN THE STUDY PLAN AREA
FOR INVESTIGATORS TO SUBMIT HOW
THE STUDY IS DESIGNED TO ADDRESS
EQUITABLE PARTICIPATION IN THE
GIVEN CONDITION UNDER STUDY AND
WHAT MITIGATION PLAN WILL BE FOR
NOT BEING ABLE TO MAYBE MEET THE
DESIGN GOALS FOR THAT EQUITABLE
DESIGN.
WE WOULDN'T HAVE TO REQUIRE THAT
AT THIS POINT IN TIME BUT IF IT
ISN'T SUBMITTED MAYBE A SIMPLE
STATEMENT THAT SAYS THE EQUITY
PLAN WAS NOT SUBMITTED AND START
SHINING LIGHTS ON PLACES THAT IS
BEING BROUGHT TO THE FRONT OR
NOT.
IT NORMALIZES THE THOUGHT
PROCESS AROUND EQUITABLE DESIGN
OR EVEN SILENCE AND ABSENCE ON
THE PLAN WHEN THERE ISN'T ONE
AND YOU CAN HAVE A FILTER ON
WHICH OF THE STUDIES HAVE DESIGN
PLANS THAT WERE EQUITABLE DESIGN
PLANS THAT WERE VISIBLE TO THE
SUPPLEMENT TO THE INTERNAL WORK
THAT ISN'T AS VISIBLE.
SO IF I'M FROM THE OUTSIDE
LOOKING AT NLM'S PRODUCTS AND I
DON'T SEE THERE'S NECESSARILY AN
INTENTIONAL APPROACH TO EQUITY
IT MAY BE EASIER TO ASSUME IT'S
NOT AS IMPORTANT WHEN WE KNOW
IT'S NOT TRUE.
I THINK THIS IS IN LINE WITH
SOME OTHER THINGS AS OF JANUARY
THE NEW ENGLAND JOURNAL WAS
REQUIRING BACKGROUND INFORMATION
ON THE REPRESENTATIVENESS OF THE
STUDY GROUP AND THAT BE POSTED
WITH THE ARTICLE OF THE TIME OF
PUBLICATION.
AND I'M CURIOUS WHETHER YOU
THOUGHT ABOUT SOME AREAS THAT
MAY BE MORE TACTICALLY
ACHIEVABLE IN A SHORTER TIME
FRAME.
>> I REALLY APPRECIATE THAT KIND
OF ATTENTION TO WAYS IN WHICH WE
CAN BE EXEMPLARS FOR THE REST OF
THE COMMUNITY OUTSIDE.
IN TERMS OF WHETHER IT'S WITHIN
SCOPE OF THE RACIAL OR ETHNIC
EQUITY PLAN, IT MAY NOT FALL
DIRECTLY IN THOSE FOCUS AREAS
AND IT IS CERTAINLY WITHIN SCOPE
OF THE IDEA COUNCIL AND WHAT WE
ACHIEVE IN THINKING ABOUT HOW
THESE COMMITMENTS CAN BE
REFLECTED EN OUR PRODUCTS AND
SERVICES.
I DO THINK THAT THERE'S -- I'VE
BEEN -- ONE OF THE REALLY LOVELY
THINGS ABOUT THIS IDEA COUNCIL
EFFORT HAS BEEN GETTING TO
INVENTORY SOME OF THE WORK THAT
IS HAPPENING ACROSS THE LIBRARY
THAT ADVANCES DIFFERS, EQUITY,
INCLUSION AND ACCESSIBILITY AND
KNOWING THAT THERE ARE DOING
WORK SCIENTIFIC ENGAGEMENT
AROUND THE COVERAROUND THE COVID PANDEMIC AND
DEVELOPING TERM TERMINOLOGY
RELATED TO SOCIAL DETERMINATES
OF HEALTH RESEARCH.
I THINK THE HISTORY OF MEDICINE
DIVISION HAS DONE FANTASTIC WORK
IN THEIR EXHIBITIONS PROGRAM AND
SO I THINK THERE'S A LOT OF
OPPORTUNITIES TO JUST TALK ABOUT
WHAT WE'RE DOING REALLY WELL IN
THIS SPACE AND GIVING OURSELVES
TIME TO THINK ABOUT HOW CAN WE,
AS YOU SUGGEST, BUILD EQUITY
INTO DESIGN.
I THINK THIS WILL BE SOMETHING
THAT THE IDEA COUNCIL PAYS
ATTENTION TO MOVING FORWARD.
AND WE ALSO HAVE LECTURE SERIES
LIKE ONE I'M GOING TO
SHAMELESSLY PLUG COMING UP IN
MARCH THAT'S HOSTED BY MY OFFICE
AROUND SORT OF ALGORITHMIC BIAS
AND HOW THAT CAN CREEP INTO WORK
IF YEAR NOT CAREFUL AND
INTENTIONAL.
I THINK THIS GIVES US GREAT
IDEAS WHERE TO GO FORWARD WITH
THE REEP AND BEYOND IN THE
COUNCIL SO I THANK YOU FOR THAT.
>> I'M GRATEFUL FOR THE WORK OF
THIS GROUP AND APPRECIATE
NANCY'S COMMENTS ABOUT BEING A
CHANGE AGENT AND HOW THAT
HAPPENS IN VISIBLE AND INVISIBLE
WAYS SOMETIMES.
ON THE TOPIC I LOVE THE IDEA OF
GETTING THE WORD OUT IN THE
EXCELLENCE IN THIS AREA ACROSS
NLM WOULD BE VERY WELCOME AND I
THINK EXCITING AND INSPIRING FOR
OTHER GROUPS.
THE OTHER THING I'D LIKE TO
SUGGEST IS THAT THE GROUP IS
PUTTING A LOT OF WORK INTO THIS
EFFORT AND I THINK IT'S
IMPORTANT WORK.
WHAT KINDS OF LESSONS CAN BE
LEARNED FROM THE JOURNEY THAT
YOU'RE ON THAT OTHERS OF US
COULD TAKE ADVANTAGE OF OR ARE
THERE MATERIALS OR APPROACHES
THAT WILL REPRESENT SOMETHING OF
A BEST PRACTICE THAT CAN PERHAPS
GIVE THE NEXT GROUP STEP UP TO
ADVANCE THEIR OWN JOURNEY.
THERE ARE PLANS FOR MAKING THE
MATERIALS AND FINDINGS FROM THE
GROUP MORE OPENLY AVAILABLE AND
ACCESSIBLE TO THE BROADER
SCIENTIFIC COMMUNITY.
>> SO THAT'S A GREAT SUGGESTION
AND SOMETHING I CAN RAISE WITH
OUR NIH LEVEL REEP COORDINATORS
ON WHETHER THEY HAVE PLANS TO
TRANSLATE OUR COMMUNITY OF
PRACTICES FINDINGS INTO THINGS
THAT ARE MORE TANGIBLE.
WE HAVE PRELIMINARY GUIDANCE BUT
IT HASN'T BEEN TESTED IN THE
REAL WORLD UNTIL NOW AS WE'RE
EMBARKING ON IT.
I DO HOPE THERE'LL BE
OPPORTUNITIES TO SHARE AND WE'VE
BEEN CAREFUL TO DOCUMENT OR
PROCESS TO HELP FUTURE VERSIONS
OF OURSELVES SO WE'RE NOT START
FROM SQUARE ONE.
>> WONDERFUL, THANK YOU.
>> THANK YOU.
>> GREAT DISCUSSION, EVEVERYBODY.
WE'RE A COUPLE MINUTES INTO OUR
BREAK AND I'D LIKE TO THANK
EVERYONE FOR THE DISCUSSION AND
COMMENTS.
I WANT TO BE MINDFUL OF EVERYONE
HAVING A CHANCE TO RUN AROUND A
LITTLE BIT AND GET AWAY FROM THE
SCREEN.
WE'RE TO BE BACK AT 45 MINUTES
AFTER THE HOUR FOR A
PRESENTATION.
PLEASE BE BACK AT THAT TIME AND
SEE YOU THEN.
I WANT TO INTRODUCE OUR NEXT TWO
PRESENTERS.
DR. ROSETTI FROM COLUMBIA
UNIVERSITY.
PREVIOUSLY A SENIOR
INFORMATICIAN AT BRIGHAM AND
WOMEN'S HOSPITAL AND RECEIVED
HER Ph.D. FROM COLUMBIA SCHOOL
OF NURSING AND POST-DOCTORAL
FELLOWSHIP AT THE DEPARTMENT OF
INFORMATICS.
TRENT ROSENBLOOM IS FROM
VANDERBILT UNIVERSITY AND AA
BOARD CERTIFIED INTERNIST AND
CLEATED A RESIDENCY IN INTERNAL
MEDICINE AND PEDIATRICS AND
INFORMATICS ALL FROM VANDERBILT.
THEY'RE HERE TO PRESENT FROM A
SYMPOSIUM ENTITLED REPORT OUT OF
THE 25 BY 5 SYMPOSIUM TO REDUCE
DOCUMENTATION BURDEN ON
CLINICIANS BY 75% BY 2025.
THE FLOOR IS YOURS TO PROCEED.
>> SARAH.
>> I COULDN'T HEAR AND WASN'T
CONNECTED AT THE MOMENT.
GREAT, I'M SORRY UP COULDN'T
HEAR ANYTHING UNTIL A MOMENT
AGO.
I'LL TAKE IT AWAY.
THANK YOU SO MUCH.
VERY HAPPY TO BE PRESENTING
HERE.
MY NAME IS VARE ROSETTI AND
CO-CHAIR OF THE 25 BY 5
SYMPOSIUM AND YOU SEE HERE AND
WONDERFULLY SPONSORED BY NLM AND
YOU SEE OUR PARTNERS AT
COLUMBIA.
SO I'D LIKE TO ACKNOWLEDGE THE
REST OF OUR STEERING COMMITTEE.
MANY OF YOU MAY RECOGNIZE MANY
NAMES ON OUR STEERING COMMITTEE.
WE HAVE A WONDERFUL GROUP OF
VERY EXPERIENCED AND ESTEEMED
INFORMICISTS
AND THIS WORK CAME OUT OF THE
2020 WINTER SYMPOSIUM AND
DISCUSSION AND VOICES LIKE JOHN
DETMER AND THERE WAS ALSO DURING
THE COURSE OF THE TIME WHEN WE
WERE PRESENTING OR DOING THIS
WORK, A SPECIAL ISSUE ON
DOCUMENTATION BURDEN THAT TRENT
ROS
ROSENBLOOM EDITED AS WELL.
THE GOALS WERE TO CREATE A
MEETING THAT ENGAGES
STAKEHOLDERS AND LEADERS
FOCUSSED ON REDUCING DOCUMENT
BURDEN TASKS AND LOOK AT SHORTER
TERM AND LONG-TERM ELIMINATION
OF DOCUMENT BURDEN AND SUPPORT
DISSEMINATION AND CHANGE AND TO
MAXIMIZE ANY PROPOSED SOLUTIONS.
SO THE DESIGN AND TECHNOLOGY
SOLUTION THAT POTENTIALLY
ENHANCE HEALTH EQUITY.
I'LL ASK DURING THE COURSE OF
OUR IS WORK WE DID CREATE WE HAD
A TASK FORCE BECAUSE THE THOUGHT
OF TECHQUITY WAS REALIZED AS
IMPORTANT.
HERE'S THE SYMPOSIUM'S AGENDA WE
HAD AND TOOK COURSE OVER SIX
WEEKS OVER JANUARY AND FEBRUARY
OF 2021.
THE SYMPOSIUM WAS HELD VIRTUALLY
AS YOU MAY HAVE KNOWN OR
EXPECTED WHEN WE HAD ORIGINALLY
PUT IN FOR THIS CONFERENCE GRANT
WE HAD PLANNED ON HAVING IT IN
PERSON OF COURSE BUT PLANS
CHANGE.
WE DECIDED SIX SESSION MADE MORE
SENSE AND WE HAD INTRODUCTIONS
AND CHALLENGES RELATED TO WHAT
WE DOCUMENT AND HAD KEY NOTE
PANELS THAT ADDRESSED THOSE
ISSUES.
AND COVERED CURRENT CHALLENGES
TO HOW WE DOCUMENT MORE ON THAT
USABILITY SIDE FOR EXAMPLE AND
HAD KEY NOTE PANELS AS WELL.
AND I'LL ALSO PAUSE TO NOTE THAT
WE HAVE A WEBSITE UP STILL IN
AND THE URL IS ON OUR SLIDES AND
YOU CAN ACCESS ALL OF THE
CONTENT FROM THE SYMPOSIUM ON
THERE.
I'M REFERRING TO THE PANELS WE
HAD THE VIDEO RECORDINGS AS WELL
AS THE POWER POINT PRESENTATIONS
ARE THERE FOR ANYBODY TO
DOWNLOAD AND REFERENCE AND WE
INCLUDE THE CHAT LOG FROM THE
ZOOM AND IT WAS WE THOUGHT AN
EXCEPTIONAL CHAT LOG FROM THE
CONTENTS AND CONVERSATION
GENERATE AND HAD STUDENTS LOOK
AT TEXT MINING OF IT.
MOVING ON TO SESSION THREE WE
HAD KEY SUCCESSES AND INCLUDING
INTERNATIONAL PRESENTATIONS AS
WELL AND IN SESSION FOUR WE
TALKED ABOUT EMERGING AND FUTURE
INNOVATIONS AS SOLUTIONS AND
THIS INCLUDED AN INDUSTRIAL
PANEL TO GET THE PERSPECTIVE
FROM INDUSTRY AND WHAT'S COMING.
IN SESSION FIVE IS WHERE WE
STARTED TO PIVOT A BIT FROM
DISCUSSION AND LEARNING ABOUT
WHAT'S HAPPENING TO LOOKING
FORWARD TO ACTIONS AND WE
STARTED WITH BREAKOUT SESSIONS
AND WE HELD BREAKOUT SESSIONS
USING THE FRAMEWORK ON
DOCUMENTATION BURDENS AND
NURSING INFORMATICS ASSOCIATION
AND THE REPORT ON DOCUMENTATION
BURDEN THAT HAD A FRAMEWORK THAT
WORKED WELL FOR US TO HAVE SIX
DIFFERENT DOMAINS THAT WE
FOCUSSED ON AND WE'LL SEE THAT
IN OUR NEXT SLIDE.
AND SO WE CONTINUED OUR
BREAKOUTS IN TO SESSION SIX
WHERE WE KIND OF WRAPPED THEM UP
A BIT MORE AND HAD A PLENARY
SPEAKER FROM THE AMERICAN
MEDICAL ASSOCIATION.
AND OVER 300 PARTICIPANTS WERE
PART OF THESE SIX SESSIONS AND
PARTICIPATION SO THOSE WERE 300
UNIQUE PARTICIPANTS AND
PARTICIPATION WAS REALLY HIGH AT
EACH SESSION HOVERING AROUND 150
TO 200 PEOPLE AT EACH SESSION SO
MOST PEOPLE WERE COMING BACK.
SO OUR TAKEAWAYS.
SO THOSE DOMAINS I THINK ARE ON
THE FOLLOWING SLIDE.
WE FOUND THAT FROM THE EXEMPLARS
PRESENTED THEY'RE DOING
EXCELLENT WORK WITH TANGIBLE
RESULTS.
YOU'LL RECALL THREES 360 MILLION
FEWER CLICKS FROM PROJECT JOY AT
UNIVERSITY OF COLORADO HEALTH
SYSTEM AND WORK THEY WERE DOING
WAS ACTUALLY BIFFED ON SOME
FABULOUS WORK FROM HCA HEALTH
SYSTEM AND SO THERE ARE SOME
PLACES WHERE THEY MOVED THE
NEEDLE ON THIS WORK AS WELL AS
WE HEARD FROM SOME INTERNATIONAL
SITES BUT IT WAS PRETTY CLEAR
THAT IT SPREAD TO OTHER HEALTH
SYSTEMS AND PROVIDERS WAS NOT
HAPPENING AND THAT WAS ALSO THE
CASE IT SEEMED WITH VENDORS AND
POLICY ADVOCACY GROUPS.
AND THOUGH GROUPS DON'T HAVE
REGULATORY CONSTRAINT STILL
EXPERIENCING BURDEN SO THIS WAS
INFORMATIVE TO KNOW REALIZE OR
CONFIRM OUR ASSUMPTIONS THAT OUR
PROBLEMS ARE NOT ALL STEM FROM
REGULATORY CONSTRAINTS BUT
THERE'S AN INTERNATIONAL FOCUS
ON DECREASING THE SIZE OF YOUR
CONTENT AND NOTES AND THIS WORK
NEEDS TO MOVE FORWARD TO THERE
CANNON SHARED LEARNING AND
DISSEMINATION OF HOW WE TACKLE
THESE PROBLEMS AND SPREAD AND
ADOPT THE SOLUTIONS THAT SITES
HAVE IDENTIFIED.
THE SIX DOMAINS ARE
REIMBURSEMENT, REGULATORY,
QUALITY, USABILITY AND
INTEROPERABILITY AND
SELF-IMPOSED AND THE
SELF-IMPOSED ONE RESONATED WITH
OUR PARTICIPANTS.
IT'S THE NOTION THAT WHEN HEALTH
SYSTEMS OR SITES WE BUILD OUR
RECORDS AND MAKE THEM BIGGER AND
MORE BURDENSOME THAN THEY NEEDED
TO BE.
SO PERHAPS WE'RE WORRIED ABOUT
COMPLIANCE ISSUES AND THE
OVERBUILD IN THAT REGARD OR WHAT
OTHER ACCREDITING ORGANIZATIONS
MAY REQUIRE BUT WERE ACTUALLY
GOING ABOVE AND BEYOND BUT THOSE
REQUIREMENTS ARE DOING SO ARE
BURDENSOME SO WE NEED TO REFLECT
ON THAT.
AND FROM THE BREAKOUT GROUPS
ALONG THE SIX DOMAINS OF BURDEN
IS OUR TEAM THAT ANALYZED OUR
DATA FROM THEM AND IDENTIFIED 82
ACTION ITEMS.
SO THEY MAPPED TO
ACCOUNTABILITY, EVIDENCE
MATTERS, EDUCATION AND TRAINING
AND INNOVATION OF TECHNOLOGY.
SO AND WE'LL MAKE SURE IT'S
BASTE ON WHAT CLINICIANS AND
CLINICAL EVIDENCE REALLY
IDENTIFIED SHOULD BE IN THERE.
ISSUES AROUND TRAINING JUST TO
CALL OUT ONE SO TO HAVE SOME
WAYS TO MAKE IT CLEAR HOW TO HOW
BREVITY AND CLARITY IN YOUR
DOCUMENTATION AND GENERATION IN
YOUR NOTES IS REALLY IMPORTANT
FOR NEW CLINICIANS.
THEN AROUND INNOVATION OF
TECHNOLOGY INCLUDED A VARIETY OF
NEW MODALITIES VOICE TO TEXT AND
INCREASING INTEROPERABILITY AND
THESE MAPPED TO THREE KEY
STAKEHOLDER GROUPS AND THIS IS
WHERE WE FOCUSSED ON THINGS THAT
PROVIDERS AND HEALTH SYSTEMS CAN
DO AND THINGS THAT VENDORS CAN
DO AND POLICY AND ADVOCACY
GROUPS.
SO THESE ARE NOT ALL BUT THE KEY
HIGHEST PRIORITIES AND
SYNTHESIZED GROUP FOR PROVIDERS
HEALTH SYSTEMS AND POLICY
ADVOCACY GROUPS AND VENDORS.
AND TRENT WILL ACTUALLY BE
PRESENTING AS WELL AND HAS
ANOTHER SLIDE WHERE SOME OF
THESE WILL BE CALLED OUT TOO SO
I'M NOT GOING TO GO THROUGH ALL
OF THESE BUT AND THERE'S A FULL
REPORT THAT WE'RE HIGHLIGHTING
OF WORK THAT IS HIGH PRIORITY
THAT EMERGED FROM OUR GROUP.
THINGS SUCH AS ESTABLISHING
GUIDING PRINCIPLES FOR ANY
DOCUMENTATION TO THE EHR WITH
MULTI-DISCIPLINARY COLLABORATION
FROM CLINICAL EFFORTS.
-- EXPERTS AND POLICY ADVOCACY
TO IDENTIFY ONE THAT IS
CERTAINLY A HIGH PRIORITY ON OUR
LIST IS URGING NIH, ONC TO DO
AND TO FUND RESEARCH RELATED TO
CAPTURING ALL CODING INFORMATION
WITHOUT ENGAGING ANY CLINICIAN
TIME.
SO WITH THAT I'M GOING TO
TRANSITION TO TRENT TO PRESENT
THE SECOND HALF OF OUR WORK.
>> SO THESE ARE SOME OF THE
TAKEAWAY POINTS SARA'S ALREADY
MENTIONED.
THE SYMPOSIUM WE WERE ABLE TO
PUT IT ON SUCCESSFULLY.
WE PUT TOGETHER STAKEHOLDERS 300
PEOPLE PARTICIPATED REPRESENTING
33 DIFFERENT GROUPS AND WE CAME
TOGETHER WITH A BOLD PLAN TO
REDUCE THE BURDEN OF CLINICAL
DOCUMENTATION BY 75% IN FIVE
YEARS.
WE LEARNED OR VALIDATED
DOCUMENTATION BURDEN HAS
NUMEROUS CONTRIBUTING FACTORS.
THERE'S ALREADY BEEN A LOT OF
GREAT RESEARCH TO DATE LOOKING
AT THIS FROM THE WORK THAT WE'VE
DONE WE IDENTIFIED AND PRESENTED
SEVERAL ACTION-ORIENTED NEXT
STEPS AND IDENTIFIED EXEMPLARS
THAT CAN INFORM SOME OF THE WORK
THAT WE HAVE TO DO AND WE REALLY
THINK THE NEXT MAJOR STEPS ARE
TO BEGIN TO BUILD A NETWORK OF
ALLIES WORKING WITH PROVIDERS,
HEALTH SYSTEMS, VENDORS AND
NATIONAL POLICY AND ADVOCACY
GROUPS.
WE'VE CREATED A NUMBER OF
OUTPUTS THOSE ARE LINKED ON THE
WEBSITE THAT SARA REFERENCED AND
THAT I'M GOING IN THE CHAT.
THIS IS INAAN INFO GRAPHIC AND
WE'VE USED THIS IN SOME OF OUR
DISSEMINATION ACTIVITIES.
WE HAVE ALL THE DATA AND
RECORDINGS AND CHAT AND SOME OF
THE ANALYSIS AND IT'S ALL
AVAILABLE TO ANYONE ON THE
COMMUNITY ON THE WEBSITE.
WE'VE DEVELOPED AN ACTION PLAN
AND DEVELOPED AN EXECUTIVE
SUMMARY AND FINAL REPORT.
ALL THOSE THINGS ARE ON THE
WEBSITE.
WE'VE HAD ONE PAPER PUBLISHED IN
APPLIED INFORMATICS AND HAVE
ANOTHER PAPER BEING SUBMITTED
THAT'S A DEEPER DIVE AND AN
INFORMATICS PRESENTATION.
WE HAVE THE COMMUNITY WITH ABOUT
200 PARTICIPANTS AND WE HAVE
ONGOING WEEKLY MEETINGS WITH OUR
STEERING COMMITTEE AND OTHER
STAKE HOLDERS.
THERE'S A GROUP DOING WORK PE
MET WITH A COUPLE TIMES AND MET
WITH SOME PRIVATE ORGANIZATIONS
AND HAVE BEEN WORKING INCREASING
LY THEN IN DECEMBER AMIA AND OUR
FUNDING WHICH WE'RE THANKFUL FOR
HAS RUN OUT AND WE'RE A MERRY
BAND OF COMMITTED VOLUNTEERS WHO
CONTINUE TO DO A LOT OF WORK
AFTER THE FUNDING RAN OUT BUT AT
SOME POINT NEED SOME
PROFESSIONAL MANAGEMENT AND AMY
HAS STOOD UP TO TAKE THAT ROLE.
SO WHAT'S NEXT?
WORKING WITH AMIA, WE'RE
PLANNING TO BUILD UP A NETWORK
OF ALLIES TO CONTINUE TO DO SOME
OF THE DISSEMINATION WORK TO
BEGIN EFFORTS TO CONVENE
NATIONAL KEY STAKEHOLDERS FROM
DIFFERENT ORGANIZATIONS AND TO
REPRESENT DIFFERENT GROUPS.
THEN WE'LL CONTINUE THE RESEARCH
AND FINDINGS.
IN TERMS OF WHY WE CHOSE AIM YA
BOTH PUTTING ON THE SYMPOSIUM AT
THE BEGINNING AND MOVING THIS
FORWARD AT THIS JUNCTURE, THIS
ENTIRE PROJECT GREW OUT OF THE
SYMPOSIUM IN 2020 WHICH ITSELF
GREW FROM THE SYMPOSIUM IN 2020
AND AMIA WAS A STRATEGIC PARTNER
IN THE 25 BY 5 SIS --
SYMPOSIUM'S DEVELOPMENT AND
CONDUCT.
MANY MEMBERS AND LEADERS IN AMIA
ALIGN WITH THOUGHT LEADERSHIP IN
THIS WORK.
WE ACTUALLY HAD AMIA BACK LAST
SUMMER AND FALL AND HELP
ORGANIZE THE WORK TO MAKE SURE
WE GOT THE EXTERNAL PEER REVIEW.
AMIA HAS A STRONG HISTORY OF
CONVENING AND POLICY WORK OF
CONNECTING ALLIES.
SO WE THOUGHT AMIA WAS A GOOD
PARTNER.
AND THERE WAS A SENSE IN THE 25
BY 5 COMMUNITY THAT A LOT OF THE
PROBLEMS WE HAVE WITH BURDEN AS
IT RELATES TO EHRs STEMS FROM OR
IS AN UNINTENDED CONSEQUENCE OF
WORK AMIA PREVIOUSLY HAD DONE A
DECADE BEFORE IN THE ADVOCACY
FOR E.H.R.
THIS PROVIDES SOME BALANCING
WORK.
SO ON JANUARY 1 OF 2022, AMIA
FORMALLY TAKE OWNERSHIP THIS
WORK AND STAFFED A PROJECT
MANAGER AND THEY'RE STANDING UP
A TASK FORCE.
SARA'S GOING TO BE THE HEAD OF
THE TASK FORCE AND WE'RE ALREADY
SEEING SOME OF THOSE
CONVERSATIONS BEING CONVENED
WITH ALLIES.
AND AMIA WAS CONSIDERING BACK IN
THE FALL WHETHER THE TASK FORCE
STICKS WITH THESE BENCHMARKS OR
NOT IS TO BE DETERMINED.
BUT THESE GIVE YOU A FLAVOR OF
HOW AMIA AND THE TASK FORCE
WHICH INCLUDES SARA AND ME AND
OTHERS ARE THINKING ABOUT MOVING
THIS WORK FORWARD.
SO THE WORD DRAFT IS CRITICAL AS
YOU LOOK AT THIS BUT THIS IS
WHAT WE'RE THINKING.
>> THANK YOU.
WE HAVE DISCUSSION LEADERS CLAY
AND HASAN.
>> I'M HAPPY TO START.
SO SIERRA AND TRENT THANK YOU
FOR DOING THIS.
THIS IS IMPORTANT WORK.
QUICKLY FIRST, HOW LARGE WAS THE
GRANT YOU GOT FROM NLM?
>> OFF THE TOP OF MY HEAD WAS
$16,000.
SO THIS AA LOT OF WORK TO EXPECT
FOR $16,000.
OBVIOUSLY THERE'S MANY MORE
HOURS OF WORK THAT WEREN'T
COVERED EVEN IF YOU JUST LOOK AT
THE PARTICIPANTS AND EVEN SO
SUCH A HUGE PROBLEM.
WITH MORE THAN 50% OF THE TIME
THE CLINICIANS HAVE SPENT ON
DOCUMENTATION, IT'S A HUGE DRAG
ON HEALTH CARE AND WE CAN'T AD
ADDITIONAL MEASURES THAT WE
COULD IMPACT QUALITY OR MEASURE
QUALITY FAR BETTER THAN WE DO IN
OUR CURRENT SYSTEM OF
DOCUMENTATION.
I'M NOT SO COMFORTABLE WEARING
THE OLD GUY IN THE ROOM HAT VERY
OFTEN BUT ONE TIME I WILL
BECAUSE I THINK IT'S RELEVANT TO
THE COVERING AND IT AFFECTS MY
SENSE OF HOW SUCCESSFUL YOU GUYS
CAN BE.
SO WHEN I STARTED MY CAREER IT
WAS ALL PAPER SO WE HAD
EVERYTHING ON PAPER AND PULLED
THE LABS UP TOO ON A PRINTOUT
AND CARRIED THEM UP FROM THE LAB
AND PUT THEM IN THE NOTES.
AND BACK THEN, YES, IT WAS
DOCUMENTATION BURDENED BUT NOT
NEARLY AS GREAT.
THE THERE WAS YOU ALMOST TRIED
TO GET AS LITTLE INTO A NOTE AS
POSSIBLE TO CONVEY THE KEY FACTS
AND THOUGHT ABOUT WHO WAS
READING THE NOTE AND YOU PUT
THOSE THINGS IN.
THEN AS THINGS CHANGED REALLY
WHAT IT WAS WAS MEDICARE RULES
ON REIMBURSEMENT THAT CHANGED.
WHEN MEDICARE CHANGED ITS RULES
AND CREATED THESE GRADATIONS OF
PAYMENT BASED ON COMPLEXITY AND
SAID THOSE NEEDED TO BE
DOCUMENTED IN SPECIFIC WAYS AND
CREATE THE WHOLE RETRAINING
AROUND OH, YOU HAVE TO INCLUDE X
NUMBER OF ELEMENTS AND FAMILY
HISTORY AND SOCIAL HISTORY AND
WHETHER IT WAS RELEVANT OR NOT
AND ALL THE NEGATIVES AND THE
LABS AND NO, IT WASN'T GOOD
ENOUGH SOMEBODY ELSE DOCUMENTED
THAT, IT HAD TO BE DONE BY THE
CLINICIAN BECAUSE THAT'S WHERE
THE DETERMINATION OF
REIMBURSEMENT WAS MADE AND WHAT
THAT DID WAS IT RETRAINED
EVERYONE TO NOT JUST THE E.H.R.
BUT THE E.H.R. ENABLED THAT TO
OVER DOCUMENT BECAUSE WE WERE
TOLD WE WERE SCOLDED WHEN WE
UNDER DOCUMENTED.
YOU'RE GOING TO GET SUED AND
THERE WERE EXAMPLES OF
INSTITUTION WOULD GET SUED FOR
OVER BILLING BECAUSE THEY DIDN'T
HAVE THE ADEQUATE DOCUMENTATION
IN THE NOTES AND CAME WITH
OVERDOCUMENTING WITH QUALITY AND
WHETHER NURSES DOCS, WE ARE SO
DETAIL ORIENTED AND WE THINK
IT'S IMPORTANT FOR US TO
DEMONSTRATE JUST HOW DETAIL
ORIENTED WE ARE.
THE MORE DOCUMENTATION AND WE
THEN TOOK IT ON AND EMBRACED
THIS ESCALATION OF DOCUMENTATION
AS WELL.
I WORRY THIS IS RELATED TO FEE
FOR SERVICE.
THAT'S A MAJOR TRIGGERING FORCE
BEHIND THIS AND YOUR POINTS
ABOUT OTHER COUNTRIES WHERE THEY
DON'T DO FEE FOR SERVICE AND
ULTIMATELY WHETHER THEY DIRECTLY
PAY FOR IT OR NOT.
THEIR SYSTEMS ARE STILL
COMPELLING THAT NOTION THAT WE
EMBRACE IN OUR CULTURE BECAUSE
WE'RE NEUROTIC BASICALLY AND
OBSESSIVE AND WONDER WHETHER IT
WILL TAKE A RECONCEPTION OF THE
WORK WE DO AND WE'RE DOING AND
WE'RE ABOUT CARING FOR PEOPLE
AND DOCUMENT WHAT IS GOING ON
FOR THE PERSON IN ACHIEVING
HEALTH OUTCOMES AND HAVING THEM
PAY FOR WOULD IMMEDIATELY CHANGE
ALL THE FACTORS AROUND WHAT IS
REQUIRED FOR DOCUMENTATION AND
WHO IS DOING IT.
THAT'S DISRUPTIVE AND WE'RE NOT
THERE YET AND CAN'T WAIT SO YOUR
EFFORTS ARE CRITICAL TO REMIND
PEOPLE HOW IMPORTANT THIS IS AND
HOPEFULLY WE CAN MAKE
SUBSTANTIAL PROGRESS BUT I
SUSPECT THAT TO GET THE KIND OF
PROGRESS THAT WE DESERVE WE NEED
A DIFFERENT UNDERLYING FINANCIAL
STRUCTURE FOR THE WORK THAT
WE'RE DOING.
YOU GUYS HAVE THOUGHT ABOUT THIS
FOR A LONG TIME.
AM I TOTALLY OFF AND YOU GUYS
ARE GOING TO SOLVE IT?
>> I AGREE WITH THE STATEMENTS
AROUND THE FINANCIAL INCENTIVES
ARE A HUGE DRIVING FORCE IN THIS
AND I THINK THOSE WERE CLEAR
THEMES WE ANTICIPATED AND
CONTINUED AS WE LEARNED MORE
THROUGH THE SYMPOSIUM.
WITH THAT SAID, THERE HAVE BEEN
EXEMPLARS THAT HAVE SHOWN THE
ABILITY TO DECREASE BURDEN IN
VERY MEANINGFUL CLINICALLY
SIGNIFICANT MEANINGFUL WAYS.
MEANINGFUL TO CLINICIANS AT
VARIOUS SITES THROUGHOUT THE
COUNTRY AND SO THIS IS FOCUSSED
AROUND AND ACTUALLY I WILL SAY
MOST OF IT AT HEALTH SYSTEMS
WORKING WITHIN THE CONTEXT OF
THEIR E.H.R. NOT REDESIGNING
THEIR E.H.R. BUT WORKING WITH
THE VENDOR TOOLS THAT ALREADY
EXIST SO MUCH OF THIS IS LET'S
DECREASE THE CON DETENT WE BUILD IN
THE SYSTEM AND SOME WITHIN THE
FRAMEWORK OF THE E.H.R. AS IT IS
NOW BUT SOME NEW APPROACHES OR
CONFIGURATIONS TO THE IN-BOX
MANAGEMENT FOR EXAMPLE FOR
PHYSICIANS FOR NURSES,
REDESIGNING OF FLOW SHEETS AND
HAS SHOWN IN THE EXEMPLARS TO
DECREASE DOCUMENTATION TIME IN
SOME PRETTY IMPRESSIVE NUMBERS.
OF COURSE, THESE ARE JUST SOME
ISOLATED CASES SO I THINK THERE
IS MUCH WORK TO BE DONE.
THE AMA ACTUALLY HAS AN
IMPRESSIVE BODY OF WORK IN
ENGAGING DIRECTLY WITH HEALTH
SYSTEMS RIGHT NOW TO HAVE THIS
GROUND ROOTS EFFORT TO MAKE
CHANGES.
SO I THINK THAT CAN HAPPEN BUT I
DO THINK THAT IT TIES BACK TO
THE CULTURE THAT YOU'RE TALKING
ABOUT OF WE NEED TO DOCUMENT
MORE TO PROVE WE DID A GOOD JOB
AND SO IT ALL KIND OF DOES IN
THE END SEEM TO STEM FROM THAT
CONCEPT AND A HEALTH SYSTEM MAY
REQUIRE WORKING WITH VARIOUS
DEPARTMENTS COMPLIANCE AND LEGAL
TO MAKE SURE IT'S CLEAR IT'S
OKAY TO MAKE SOME OF THESE
CHANGES.
>> THANK YOU, CLAY.
WE SHOULD GO BACK AND HOLD THE
SYMPOSIUM BEEN BECAUSE THEY'RE
IMPORTANT AND RESONATE WITH
STAKEHOLDERS.
A LOT OF THE WORK WE DID
VALIDATION AND TWO AREAS THAT
CAME UP TIME AND TIME AGAIN AS
THEY RELATE TO NATIONAL LEVEL
REGULATION THAT DRIVES
DOCUMENTATION BURDEN AND OVER
DOCUMENTATION.
ONE WAS THE ENTIRE FRAMEWORK OF
REIMBURSEMENT BEING TIED TO
DOCUMENTATION.
AND AMIA FOR A NUMBER OF YEARS
HAS BEEN ADVOCATING THAT THOSE
TWO BE DISENTANGLED AND CMS IS
DOING WORK IN THE SPACE NOW.
THE OTHER IS THE ENTIRE WORK
THAT IS DONE AROUND PRIOR
AUTHORIZATION.
SO MOST OF OUR ATTENDEES
INTERPRETED PRIOR AUTHORIZATION
WORK AS A TYPE OF DOCUMENTATION
AND THEY'RE WRITING AND CLICKING
TO GET THE APPROPRIATE DECISION
PAID FOR THEIR DECISIONS.
WE HEARD FROM OUR STAKEHOLDERS,
THAT TOO IS BURDENSOME.
THERE'S ALWAYS THAT THINK BACK
ON THE PAPER-BASED CHARTS WHICH
LACKED A LOT OF THESE BURDENSOME
ELEMENT.
I'M FROM BACK THEN TOO.
THERE ARE A LOT OF BENEFITS TO
BE HAD FROM OUR CURRENT
ELECTRONIC WORLD BUT IT DOESN'T
ENABLE SOME OF THESE CHALLENGES.
>> THANK YOU.
I'M EXCITED TO SEE THE PROGRESS.
THANK YOU FOR YOUR GRET WORK.
WE'LL HAND IT OVER TO WHO IS
NEXT.
>> HEIDI HAS HER HAND UP.
>> THIS IS REALLY IMPORTANT WORK
I WOULD SAY.
IT BRINGS UP A LARGER CHALLENGE
AS IT RELATES TO THE VENDORS
WHICH IS A MORASS.
AND I THINK SOME OF THE
CHALLENGES THAT THE
DOCUMENTATION PROBLEM RELATE TO
ARE VERY MUCH DICTATED BY THE
E.H.R. VENDOR ENVIRONMENT AND
SYSTEMS AND IT'S BEEN VERY
HARD -- THE WAY MANY OF US WORK
WITH E.H.R. VENDORS IS VERY MUCH
IN SILOS AND THEN THEY CREATE
PROPRIETARY SYSTEMS AND
DISCOURAGE COLLABORATION AND I
WONDER IF THIS VERY PARADIGM YOU
SET UP FOR THIS PROJECT IS
ACTUALLY A MODEL TO THINK ABOUT
OTHER WAYS OUR COMMUNITY ENGAGES
WITH HEALTH CARE I.T. SYSTEMS
AND VENDORS LIKE EPIC SO WE CAN
COLLABORATE UP FRONT AND FORCE
CHANGE BETTER AND NOT BE SO
BEHOLDEN TO EPIC.
>> GREAT COMMENT.
WE HAD REPRESENTATIVES FROM EPIC
AND SERNER AND THEY WERE HIGHLY
ENGAGED AND INCLUDED SOME OF OUR
PRESENTERS.
OUR COMING WORK WITH THE TASK
FORCE WILL SEE IF WE CAN DO THAT
AND THROUGH THIS TYPE OF
ORGANIZATION REALLY AFFECT
CHANGE.
WE PLAN ON LEVERAGING THE
WORKING GROUPS IN A WAY TO HAVE
REPRESENTATIVES ON THE TASK
FORCE INCLUDING FROM THE VENDOR
COMMUNITY AND LEADING SOME
EFFORTS.
SO WE HOPE FOR THAT TO HAPPEN.
I CERTAINLY CAN'T SPEAK FOR THE
VENDORS BY ANY MEANS.
THE REPRESENTATIVES THAT ENGAGED
IN THE SYMPOSIUM WERE HIGHLY
MOTIVATED FOR THIS WORK BUT I
DON'T KNOW HOW THAT TRICKLES
DOWN TO IMPACTING CHANGE IN
THEIR PRODUCTS.
>> WE HAD A REPRESENTATIVE FROM
EPIC FAMILY PRACTITIONER WHO IS
PART OF EPIC'S -- I FORGET WHAT
THEY CALL IT OFFICE OF PHYSICIAN
WELLNESS OR SOMETHING.
EPIC HAS SUCH AN OFFICE,
PARTICIPATE IN ACME AND
PARTICIPATED IN SOME OF THE 25
BY 5 STUFF AND IS NOW IN CLOSE
CONVERSATION WITH AMIA ABOUT
SOME SYNERGIES AND WAYS TO
ADDRESS SOME CONCERNS.
THE OTHER POINT I WANT TO MAKE
AND I KNOW THIS ISN'T EXACTLY
THE QUESTION YOU ASKED OR IDEA
YOU RAISED BUT RELEVANT TO THE
CONVERSATION AND THAT IS THAT
OVER AND OVER VENDORS ARTICULATE
THE STANCE THAT THEY'RE TRYING
TO SERVE THEIR CUSTOMER AND
RIGHT NOW WHAT THEIR CUSTOMERS
NEED IS TO DO E & OF M CODING
AND 21st CENTURY CURES ACT AND
WE HAVE TO DO THAT REGULATORY
DRIVEN THING SO A LOT OF THEIR
ENERGY IS SPENT DRIVING OUT SO
THE HEALTH SYSTEMS CAN GET PAID
AND NOT SPEND MAKING THE E.H.R.
EASIER TO IT USE BECAUSE THERE'S
JUST NO INCENTIVE FOR ANYONE.
SO THAT'S SOME OF THE WORK WE
ENVISION AS WE DRIVE INTO THE
POLICY SPACE SO THAT THE E.H.R.
VENDORS AND THEIR CUSTOMERS WILL
HAVE THESE INCENTIVES THAT ARE
DIFFERENT THAN JUST GETTING
PAID.
>> THERE'S AN AREA OF CONCERN
FOR EVERYBODY.
FOR THOSE WHO DON'T KNOW I'M
FROM EPIC.
I'VE BEEN HERE ABOUT 21 YEARS
NOW.
I'M A RESEARCH SCIENTIST BY
TRAINING BACKGROUND AND NOT A
PHYSICIAN BUT HAVE AN IDEA OF A
LOT OF THE WORK WE DO TO TRY TO
ADDRESS SOME OF THE CLINICIAN
EFFICIENCY ISSUES AND I THINK
THERE ARE UNDERSTANDING AND
MISUNDERSTANDINGS AND A LOT OF
AWARENESS THAT IS SOMETHING THAT
IS AN ONGOING EFFORT.
OFF THE TOP OF MY HEAD, FROM THE
SOFTWARE PERSPECTIVE, YES,
EVERYONE HEALTH ORGANIZATION HAS
TO FIGURE OUT HOW THEY ARE GOING
MEET THE REQUIREMENTS AND
DOCUMENTATION REQUIREMENTS THAT
ARE THEY NEED TO GET PAID.
THAT IS THE RESPONSIBILITY OF
EVERY ORGANIZATION AS WELL.
THAT DOESN'T MEAN THAT THE
SOFTWARE SYSTEM HAS TO BE
INEFFICIENT.
SO A COUPLE THINGS YOU MAY NOT
BE AWARE OF AND SOUNDS LIKE A
NUMBER OF PEOPLE AREN'T AND I
CAN ONLY SPEAK FOR OUR E.H.R.
BUT NOT FOR E.H.R.s IN GENERAL
AND LIKE WE WOULDN'T WANT TO
LUMP ALL PEOPLE TOGETHER IN THE
SAME GROUP WE SHOULDN'T LUMP ALL
E.H.R.s TOGETHER BECAUSE THERE'S
DIFFERENTIATIONS AND
OPPORTUNITIES FOR ALL.
WE HAVE A VERY STRONG COMMUNITY
SHARING PHILOSOPHY SO BEST
PRACTICES.
WE HAVE A PACKET OF BEST
PRACTICES FROM LESSONS FROM
OTHER ORGANIZATIONS AND THE
COLORADO EXAMPLE THE SPRINT
INITIATIVES THAT HAVE BEEN VERY
SUCCESSFUL GROUPS, WE ACTIVELY
PROMOTE THOSE PRACTICES ACROSS
COMMUNITY.
DIGGING DEEPER, IT'S POSSIBLE IN
A SOFTWARE SYSTEM TO COLLECT
WHAT PEOPLE ARE DOING IN THE
SYSTEM AND THE PATHWAYS THEY'RE
TAKING TO DO THINGS.
WE CALL THESE EFFICIENCY METRICS
AND MEASURES AND WE HAVE BUILT
CLINICIAN FACING GUIDANCES.
IF IT SEEMS LIKE IT TAKES SIX
STEPS TO DO SOMETHING THAT COULD
BE IN ONE STEP WE'LL FEED THAT
TO YOU AND THAT WILL FEED INTO
THE DASHBOARDING WE HAVE AROUND
EFFICIENCY METRIC AT THE
INDIVIDUAL AND DEPARTMENT AND
SPECIALTY LEVEL AND
ORGANIZATIONAL LEVEL AND
BENCHMARK THOSE THINGS SO THOSE
ARE ALL CAPABILITIES THE
SOFTWARE PROVIDES.
IN ADDITION WE HAVE A.I. AND
M.L. BASED WORK THAT CAN HELP
DRIVE WORK FLOW.
THOSE ARE TYPES OF THINGS
SOFTWARE SYSTEMS CAN HELP DO.
SO I THINK THAT THIS IS NOT AN
AREA THERE'S NOT A SINGLE CAUSE.
IT WILL TAKE EFFORTS ACROSS ALL
THESE AREAS WHETHER IT IS
REGULATORY SOME OF THE
COMMITMENT TO PERSONALIZED
SYSTEMS.
OVER THE PAST DECADE OR SO THE
ABILITY TO PERSONALIZE THE
SOFTWARE FOR HOW I WORK HAS BEEN
INCREASINGLY PREVALENT AND IF I
TAKE THE TIME UP FRONT TO DO
THAT I BECOME MORE EFFICIENT IN
EVERY ENCOUNTER I HAVE.
SO THAT'S A COMPLEX CHALLENGE
WITH LOTS OF SOLUTION AREAS AND
I'LL LEAVE IT THERE.
ALSO, A COUPLE OTHER LITTLE
TIDBITS YOU MIGHT FIND
INTERESTING.
WE DO FLEX METRICS ON NOTE
WRITING IN THE U.S. AND
INTERNATIONALLY FOR
ORGANIZATIONS THAT USE OUR
SOFTWARE AND A 2020 AS OF 2020,
THE AVERAGE NOTE LENGTH IS THREE
TO FOUR TIMES LONGER IN THE
U.S. THAN INTERNATIONALLY.
THE NOTE LENGTH IN THE
U.S. TRIPLED SINCE 2009.
I'LL STOP.
THANKS.
>> I THINK NANCY HAS VOLUNTEERED
TO JOIN US ON THE TASK FORCE.
IT'S A GREAT PERSPECTIVE.
I APPRECIATE IT.
>> ANY OTHER COMMENTS FOR SARAH
AND TRENT BEFORE WE MOVE ON?
THIS IS FASCINATING WORK AND
AFFECTS PEOPLE.
>> THIS IS THE BEST $16,000
INVESTMENT NLM HAS EVER MADE.
>> THAT WAS CHEAP.
>> THANK YOU.
>> WE APPRECIATE THE SUPPORT AND
INTEREST AND LOOKING FORWARD TO
MAKING THIS HAPPEN.
>> THANKS TO YOU.
THANK YOU.
>> THANK YOU BOTH FOR A GREAT
PRESENTATION.
WE ARE JUST A FEW MINUTES OVER
BUT BASICALLY ON TIME FOR OUR
NEXT SCINTILLATING AGENDA ITEM.
I'M MENTIONING THE APPOINTMENT
OF THE NOMINATING COMMITTEE TO
SELECT THE NEXT BOARD OF REGENTS
CARE.
BRENT MILLER AGREED TO CHAIR THE
NOMINATING COMMITTEE WHICH WILL
CONSISTENT OF DR. MASINEK AND
JOE FRANCIS AND THEY'LL
DELIBERATE AND REPORT BACK IN
THE MAY MEETING FOR THE NEXT
SELECTION OF THE BOARD CHAIR.
WITH THAT I THINK THE NEXT ITEM,
I'M NOT SURE IF RICHARD PALMER
WILL STEP UP AT THIS POINT BUT
WE'LL BE INTRODUCED TO THE R25
GRANT MECHANISM CONCEPT
CLEARANCE TO BE PRESENTED BY
DR. SUTIAN.
AND I'M NOT SURE WHO WILL TAKE
OFF WITH THAT BUT I THINK WE'RE
READY TO GO WITH IT.
>> THANK YOU.
I'M PRESENT A PROGRAM
TARGETINGIO INFOTARGETING
IO -- BIOINFORMATICS AND I
PRESENTED YESTERDAY AND I
APPRECIATE THE COMMENTS AND
SUGGESTIONS MADE.
SO MANY OF THE INSTITUTES AND
CENTERS ACROSS THE NIH HAVE
RESEARCH EDUCATION TERMS THAT
SUPPORT EDUCATIONAL ACTIVITIES
THAT MOSTLY COMPLIMENT OTHER
TRAINING TRAMS IN THE VARIOUS
MISSION AREAS OF THE DIFFERENT
I.C.s.
AND THE OVERALL GOALS FOR THESE
TERMS ARE TO COMPLIMENT OR
ENHANCE THE TRAINING OF THE
WORKFORCE TO ENHANCE THE
NATION'S BEHAVIORAL AND RESEARCH
NEEDS AND ENCOURAGE INDIVIDUALS
FROM DIVERSE BACKGROUNDS
INCLUDING UNDER REPRESENTED
GROUPS IN THE BIO MEDICAL AND
BEHAVIORAL SCIENCE TO PURSUE
FURTHER STUDIES OR CAREERS IN
RESEARCH, TO HELP RECRUIT
INDIVIDUAL WITH DISCIPLINARY
BACKGROUNDS TO RESEARCH CAREERS
AND TO FOSTER A BETTER
UNDERSTANDING OF BIOMEDICAL
BEHAVIORAL AND CLINICAL
RESEARCH.
I WANT TO MENTION THIS DOES FIT
INTO THE THIRD PILLAR OF THE NLM
STRATEGIC PLAN WHICH IS TO BUILD
A WORKFORCE FOR DATA DRIVEN
RESEARCH AND HEALTH.
SO LAST YEAR WE RE-ISSUED THE
T15 PROGRAM WHICH IS A TRAINING
IN BIOMEDICAL INFORMATICS AND IN
THE PAST IT WAS OPEN TO
UNDERGRADUATED WHO WERE ABLE TO
PARTICIPATE -- UNDERGRADUATED
WHO WERE ABLE TO PARTICIPATE AND
DUE TO POLICY CHANGES WERE
EXCLUDED IN THE NEW T15 PROGRAM.
PROPOSED PROGRAM I'M TALKING
ABOUT WILL HELP TO ADDRESS THE
NEED IN TRAINING UNDERGRADUATES
AND DEVELOP A PIPELINE OF FUTURE
SCIENTISTS INTERESTED IN BIO
INFORMATICS AND DATA SCIENCE
RESEARCH.
SO WE'VE BEEN TALKING A LOT
ABOUT DIVERSITY AND EQUITY
TODAY.
I'LL JUST MENTION RESEARCH SHOWS
THAT DIVERSE TEAMS WORKING
TOGETHER AND BUILDING ON IDEAS
AND DISTINCT PERSPECTIVES TEND
TO OUTPERFORM TEAMS THAT ARE
MORE HOMOGENEOUS AND SCIENTISTS
AND TRAINEES FROM DIVERSE
BACKGROUNDS AND DIVERSE
EXPERIENCES BRING MORE
CREATIVITY AND INDIVIDUAL
ENTERPRISE TO ADDRESS COMPLEX
SCIENTIFIC PROBLEMS AND THERE
MAY BE BENEFITS THAT FLOW FROM
THE DIVERSE SCIENTIFIC WORKFORCE
THAT INCLUDES THINGS LIKE
FOSTERING SCIENTIFIC INNOVATION,
ENHANCING GLOBAL
COMPETITIVENESS, CONTRIBUTING TO
ROBUST LEARNING ENVIRONMENT AND
IMPROVING THE QUALITY OF THE
ERS, ADVANCING THE LIKELIHOOD
THAT UNDER SERVED OR HEALTH
DISPARITIES POPULATIONS
PARTICIPATE NOT ONLY PARTICIPATE
IN BUT BENEFIT AND ENHANCE THE
PUBLIC TRUST.
SO THE OVERALL OBJECTIVE OF THE
PROPOSED PROGRAM IS TO SUPPORT
EDUCATIONAL ACTIVITIES TARGETING
UNDERGRADUATES INCLUDING UNDER
REPRESENTED POPULATIONS
PARTICULARLY IN BIOMEDICAL
INFORMATICS AND DATA SCIENCE AND
TO ENCOURAGE THEM TO PURSUE
TRAINING AND ULTIMATELY CAREERS
IN THESE AREAS TO FURTHER
PROMOTE DIVERSITY BY DEVELOPING
TERMS THAT NOT ONLY INCREASE
PARTICIPATION BUT RETENTION OF
PEOPLE FROM UNDER REPRESENTED
BACKGROUNDS.
IN 2019, NIH PUBLISHED A NOTICE
OF INTEREST IN DIVERSITY
REFERENCED HERE AND ALSO TO
INCREASE THE POOL OF FUTURE
RESEARCH INVESTIGATORS FROM
DIVERSE BACKGROUNDS AND TO
ENCOURAGE THEM IN TERMS OF
FACILITATING THEIR CAREER AND
NEXT STEPS IN SCIENCE.
SO DRILLING DOWN TO ACCOMPLISH
THE GOALS WE'RE GOING TO DEVELOP
THIS SHORT TERM PROGRAM BUT ALSO
INCLUDING REINFORCING THEIR
INTENT TO GRADUATE AND PREPARE
THEM FOR DOCTORAL PROGRAM
ADMISSIONS.
APPLICANTS TO THIS PROGRAM WILL
BE EXPECTED TO DEVELOP A BIO
INFORMATICS INFORMATION
EDUCATION RESEARCH PROGRAM WHERE
TRAINEES CAN BE SUPPORT FORD
SHORT-TERM, FOR EXAMPLE, WE'VE
BEEN THINKING ABOUT A 12-WEEK
SUMMER PROGRAM AND THIS SHOULD
INCLUDE SKILLS DEVELOPMENT IN
COURSES, SEMINARS AND WORKSHOPS
WITH BIOMEDICAL, TRANSLATIONAL
HEALTH AND INFORMATICS AND
MACHINE LEARNING AND A.I.,
HEALTH EQUITY AND HEALTH
DISPARITIES AND INFORMATION
SCIENCE.
STUDENTS WHO WOULD BE ELIGIBLE
FOR THIS AS A TRAINEE WILL HAVE
ALREADY COMPLETED ONE ACADEMIC
YEAR OF POST-SECONDARY EDUCATION
WITH THE COMPLETION OF TWO YEARS
PREFERRED FOR PARTICIPATION IN
THE PROGRAM.
WE'RE ALSO GOING TO ENCOURAGE
THE PARTNERING WITH MINORITY
SERVING INSTITUTIONS AND
INSTITUTION ARE IN IDEA STATES.
IDEA STATES ARE WHERE FUNDING
HAS HISTORICALLY BEEN LOW FROM
NIH AND WE WILL ENCOURAGE --
SOME COMMENTS CAME UP YESTERDAY
ABOUT WHAT WE WOULD REQUIRE AND
ENCOURAGE AND WE NEED TO FLUSH
THAT OUT A BIT MORE BUT
BASICALLY WE'RE LOOKING AT
ENCOURAGING THE PARTNERSHIP
BETWEEN MORE RESEARCH INTENSIVE
INSTITUTIONS AND LESS RESEARCH
INTENSIVE INSTITUTIONS SO THAT
THEY WILL HAVE ACCESS TO A POOL
AND ALSO BRING IN INSTITUTIONS
THAT MAY NOT HAVE THE SAME
RESOURCES.
SO THAT'S ESSENTIALLY AN
OVERVIEW OF THE CONCEPT AND WE
WELCOME ANY ADDITIONAL COMMENTS
AND QUESTIONS FROM WHAT WE
RECEIVED YESTERDAY.
THANK YOU.
>> THANK YOU, MERRILL.
>> I'M ENCOURAGED BY THIS BUT I
WAS JUST WONDERING WHETHER I
NOTICED YOU USED THE TERM BIO FF
INFORMATICS IS IT BIOMEDICAL
INFORMATICS OR BIO INFORMATICS.
>> IT WAS MEANT TO BE GENERIC.
>> THANK YOU.
>> I BELIEVE WE HAVE TO AS A
BOARD TAKE SOME ACTION ON THIS
R25 CONCEPT TO APPROVE IT.
SO WE WILL WANT TO DO THAT
BEFORE WE LEAVE THE DISCUSSION
BUT I WANT TO MAKE SURE PEOPLE
HAVE A CHANCE TO ASK QUESTIONS
OR MAKE COMMENTS AND IT AS MERLE
MENTIONED THE EP SUBCOMMITTEE
DISCUSSED THIS WITH MERLE AND
DR. PALMER YESTERDAY AS WELL.
>> I THINK THIS IS A GREAT
PROGRAM.
I'M EXCITED TO SEE IT PRESENTED.
I'M ENTHUSIASTIC ABOUT SPREADING
THE WORD ABOUT IT AND GETTING
PEOPLE ENGAGED AND MAKING PEOPLE
AWARE OF IT.
ANYTHING WE CAN DO TO SUPPORT
NEW VOICES AND PEOPLE
UNDERSTANDING THESE ARE TRAINING
AND CAREER OPPORTUNITIES IS
REALLY EXCITING SO THANK YOU.
>> THANKS, KRISTI.
>> IF THERE ARE NO OTHER
QUESTIONS OR COMMENTS FOR MERYL
CAN I HAVE A MOTION TO ACCEPT
THES FUNDING MECHANISM.
WE HAVE A MOTION AND SECOND ALL
IN FAVOR OF APPROVING THE R25
CONCEPT.
ANY OPPOSED?
APPEARS TO BE PASSED.
SO THANK YOU.
THANK YOU, MERYL.
>> THANK YOU.
>> THAT CON INCLUDES THE REGULAR
BUSINESS FOR THE OPEN SESSION OF
THE BOARD MEETING.
BEFORE I END THAT, IS THERE
ANYTHING ELSE THAT BEFORE WE
MOVE INTO CLOSED SESSION PORTION
OF THE MEETING I NEED TO BE
AWARE OF OR ANYBODY WANTS TO
ADD?
IF NOT, AND NOT SEEING ANY, WE
WILL NOW PROCEED INTO A CLOSED
SESSION.
SO THIS MARKS THE END OF THE
OPEN PORTION OF THE BOARD OF
REGENTS MEETING AND BROADCAST
VIDEO.
FOR THOSE WATCHING THANK YOU FOR
YOUR PARTICIPATION.