1 00:00:05,920 --> 00:00:08,840 WELCOME TO THE OPEN SESSION OF 2 00:00:08,840 --> 00:00:11,680 THE NIDCD ADVISORY COUNCIL. 3 00:00:11,680 --> 00:00:13,520 AS A REMINDER THE OPEN SESSION 4 00:00:13,520 --> 00:00:16,400 OF OUR MEETING IS BEING VIDEO 5 00:00:16,400 --> 00:00:18,840 CAST LIVE AND WILL BE ARCHIVED 6 00:00:18,840 --> 00:00:20,760 FOR VIEWING BY MEMBERS OF THE 7 00:00:20,760 --> 00:00:22,720 PUBLIC AND THE NIH STAFF FOR ONE 8 00:00:22,720 --> 00:00:23,360 YEAR. 9 00:00:23,360 --> 00:00:27,000 I ALSO WANTED TO REMIND THOSE ON 10 00:00:27,000 --> 00:00:28,440 THE ZOOM CALL TO PLEASE KEEP 11 00:00:28,440 --> 00:00:31,840 YOUR VIDEO OFF WHEN YOU'RE NOT 12 00:00:31,840 --> 00:00:35,200 MEETING SO THAT THE ASL 13 00:00:35,200 --> 00:00:37,360 INTERPRETER CAN BE SEEN. 14 00:00:37,360 --> 00:00:38,800 AND NOW SOME ADMINISTRATIVE 15 00:00:38,800 --> 00:00:42,960 ISSUES. 16 00:00:42,960 --> 00:00:47,720 THE MAY MEETING IS TO SAY 17 00:00:47,720 --> 00:00:49,400 GOOD-BYE TO OUR MEMBERS ROTATING 18 00:00:49,400 --> 00:00:59,480 OFF. 19 00:01:00,080 --> 00:01:02,600 SO I WOULD LIKE TO START TODAY 20 00:01:02,600 --> 00:01:12,800 BY THANKING DR. LAUREL CARNEY 21 00:01:12,800 --> 00:01:14,000 FOR HER SERVICE. 22 00:01:14,000 --> 00:01:15,760 I WOULD LIKE TO EXPRESS OUR 23 00:01:15,760 --> 00:01:17,320 GRATITUDE FOR YOUR TIME AND 24 00:01:17,320 --> 00:01:19,880 EFFORTS WHILE SERVING AS A 25 00:01:19,880 --> 00:01:21,560 MEMBER OF THE NATIONAL DEAFNESS 26 00:01:21,560 --> 00:01:23,120 AND OTHER COMMUNICATION 27 00:01:23,120 --> 00:01:25,320 DISORDERS ADVISORY COUNCIL. 28 00:01:25,320 --> 00:01:27,120 NORMALLY WE WOULD HAND A 29 00:01:27,120 --> 00:01:28,560 CERTIFICATE TO YOU THAT IS 30 00:01:28,560 --> 00:01:31,560 SIGNED BY DR. TABAK RECOGNIZING 31 00:01:31,560 --> 00:01:34,000 YOUR SERVICE AS A TOKEN OF OUR 32 00:01:34,000 --> 00:01:35,640 APPRECIATION AND WE'LL GET THAT 33 00:01:35,640 --> 00:01:36,440 CERTIFICATE TO YOU AS SOON AS 34 00:01:36,440 --> 00:01:38,080 POSSIBLE. 35 00:01:38,080 --> 00:01:40,440 AS HAS BEEN OUR TRADITION 36 00:01:40,440 --> 00:01:41,680 RETIRING COUNCILMEMBERS ARE 37 00:01:41,680 --> 00:01:43,360 INVITED TO PROVIDE US WITH 38 00:01:43,360 --> 00:01:45,560 ADVISER OBSERVATIONS GLEANED 39 00:01:45,560 --> 00:01:47,440 FROM YOUR TIME ON COUNCIL. 40 00:01:47,440 --> 00:01:52,320 SO NOW DR. CARNEY THE FLOOR IS 41 00:01:52,320 --> 00:01:53,240 YOURS. 42 00:01:53,240 --> 00:01:54,960 >> HI. 43 00:01:54,960 --> 00:01:56,600 IT'S BEEN VERY INTERESTING. 44 00:01:56,600 --> 00:01:58,360 I REALLY APPRECIATE THE 45 00:01:58,360 --> 00:01:59,280 OPPORTUNITY TO SERVE ON THE 46 00:01:59,280 --> 00:02:01,160 COUNCIL. 47 00:02:01,160 --> 00:02:02,800 BUT ONLY FOR A SHORT TIME AND 48 00:02:02,800 --> 00:02:05,000 ONLY VIRTUALLY. 49 00:02:05,000 --> 00:02:08,000 I REALLY WISH I HAD BEEN ABLE TO 50 00:02:08,000 --> 00:02:09,680 JOIN IN PERSON AND I THINK I 51 00:02:09,680 --> 00:02:11,120 WOULD HAVE LEARNED A LOT MORE 52 00:02:11,120 --> 00:02:12,040 THAT WAY. 53 00:02:12,040 --> 00:02:15,120 I DID WANT TO CALL OUT AND THANK 54 00:02:15,120 --> 00:02:16,880 THE ONE PERSON IN PARTICULAR. 55 00:02:16,880 --> 00:02:19,440 I DON'T KNOW IF I'M THE ONLY ONE 56 00:02:19,440 --> 00:02:21,800 BUT WITHOUT NANETTE STEVENSON 57 00:02:21,800 --> 00:02:24,120 HOLDING MY VIRTUAL HAND FOR THE 58 00:02:24,120 --> 00:02:26,560 LAST TWO YEARS -- I WOULD NOT 59 00:02:26,560 --> 00:02:27,880 HAVE GOTTEN THROUGH THE VARIOUS 60 00:02:27,880 --> 00:02:29,560 HURDLES THAT ARE REQUIRED OF 61 00:02:29,560 --> 00:02:30,280 COUNCIL MEMBERS. 62 00:02:30,280 --> 00:02:32,920 SO I WANTED TO THANK NANETTE AND 63 00:02:32,920 --> 00:02:38,200 ALSO GINGER FOR HER HELP -- IN 64 00:02:38,200 --> 00:02:38,800 PROVIDING US LOTS OF 65 00:02:38,800 --> 00:02:41,400 INFORMATION. 66 00:02:41,400 --> 00:02:43,840 SO THANKS AND GOOD LUCK TO YOU 67 00:02:43,840 --> 00:02:45,080 AS YOU PReS ON. 68 00:02:45,080 --> 00:02:46,880 >> THANKS SO MUCH, LAUREL AND 69 00:02:46,880 --> 00:02:48,200 THANK YOU VERY MUCH. 70 00:02:48,200 --> 00:02:48,880 ALL RIGHT. 71 00:02:48,880 --> 00:02:51,480 NOW WE'LL MOVE ON TO 72 00:02:51,480 --> 00:02:53,720 INTRODUCTIONS OF THE REMAINING 73 00:02:53,720 --> 00:02:54,760 COUNCILMEMBERS. 74 00:02:54,760 --> 00:02:56,840 I'LL CALL ON EACH MEMBER AND ASK 75 00:02:56,840 --> 00:02:59,280 TO YOU STATE YOUR NAME AND 76 00:02:59,280 --> 00:03:01,760 AFFILIATION AND SAY A FEW WORDS 77 00:03:01,760 --> 00:03:03,640 ABOUT YOUR EXPERTISE. 78 00:03:03,640 --> 00:03:06,960 WE'LL START WITH DR. EMILY BUS. 79 00:03:06,960 --> 00:03:08,640 >> I'M A PROFESSOR AT THE 80 00:03:08,640 --> 00:03:09,880 UNIVERSITY OF NORTH CAROLINA AT 81 00:03:09,880 --> 00:03:13,280 CHAPEL HILL AND I STUDY HEARING 82 00:03:13,280 --> 00:03:16,720 AND HUMANS USING -- METHODS WITH 83 00:03:16,720 --> 00:03:21,000 THE FOCUS ON AUDITORY METHODS 84 00:03:21,000 --> 00:03:27,760 AND EFFECTS OF HEARING LOSS. 85 00:03:27,760 --> 00:03:31,560 >> DR. -- CHAUDHARI 86 00:03:31,560 --> 00:03:32,840 >> HELLO. 87 00:03:32,840 --> 00:03:35,560 I'M VERY HONORED TO BE ON THIS 88 00:03:35,560 --> 00:03:36,400 ADVISORY COUNCIL. 89 00:03:36,400 --> 00:03:37,960 I'M AT THE UNIVERSITY OF MIAMI 90 00:03:37,960 --> 00:03:42,160 SCHOOL OF MEDICINE AND I STUDY 91 00:03:42,160 --> 00:03:44,200 PRINCIPALLY -- FROM A 92 00:03:44,200 --> 00:03:46,720 PERSPECTIVE OF PERIPHERAL 93 00:03:46,720 --> 00:03:49,600 MECHANISMS -- FEW RECALL 94 00:03:49,600 --> 00:03:56,080 CONNECTIVITY AND -- AND PATHWAYS 95 00:03:56,080 --> 00:03:57,280 IN THE BRAIN. 96 00:03:57,280 --> 00:04:02,120 THANK YOU. 97 00:04:02,120 --> 00:04:09,360 >> MS. VICKI WILLIAMS. 98 00:04:09,360 --> 00:04:12,160 >> HI. 99 00:04:12,160 --> 00:04:15,240 A LITTLE TECHNICAL DIFFICULTIES. 100 00:04:15,240 --> 00:04:17,240 I'M THE CEO 101 00:04:17,240 --> 00:04:27,640 [ AUDIO DIFFICULTIES ] 102 00:04:53,520 --> 00:04:58,520 [ AUDIO DIFFICULTIES ] 103 00:04:58,520 --> 00:05:02,800 >> THANK YOU. 104 00:05:02,800 --> 00:05:08,960 DR. RUTH ANNEATOCK. 105 00:05:08,960 --> 00:05:11,640 >> HI I'M AT THE UNIVERSITY OF 106 00:05:11,640 --> 00:05:13,720 CHICAGO IN NEURAL BIOLOGY. 107 00:05:13,720 --> 00:05:17,760 WE STUDY THE PHYSIOLOGY OF THE 108 00:05:17,760 --> 00:05:21,280 SENSORY RECEPTOR CELLS AND 109 00:05:21,280 --> 00:05:23,920 NEURONS OF THE INNER EAR AND HOW 110 00:05:23,920 --> 00:05:26,680 THEY USE THEIR COMPLIMENTS TO 111 00:05:26,680 --> 00:05:29,240 GENERATE AND SHAPE THE 112 00:05:29,240 --> 00:05:32,760 ELECTRICAL SIGNALS THAT ENCODE 113 00:05:32,760 --> 00:05:34,160 SOUND AND HEAD MOTION TO BE SENT 114 00:05:34,160 --> 00:05:35,000 TO THE BRAIN. 115 00:05:35,000 --> 00:05:35,880 THANKS. 116 00:05:35,880 --> 00:05:41,000 >> THANK YOU. 117 00:05:41,000 --> 00:05:46,760 MR. RICHARD EINHORN 118 00:05:46,760 --> 00:05:51,600 >> I'M I SPECIALIZE IN WORKING 119 00:05:51,600 --> 00:05:53,960 ON * BETTER TECHNOLOGY SOLUTIONS 120 00:05:53,960 --> 00:05:56,800 FOR PEOPLE WITH HEARING LOSS. 121 00:05:56,800 --> 00:05:58,440 I'M THE FORMER CHAIR OF THE 122 00:05:58,440 --> 00:06:01,760 BOARD OF THE HEARING LOSS 123 00:06:01,760 --> 00:06:03,040 ASSOCIATION OF AMERICA AND I'VE 124 00:06:03,040 --> 00:06:05,240 E BEEN ON THIS COUNCIL FOR TWO 125 00:06:05,240 --> 00:06:05,800 YEARS NOW. 126 00:06:05,800 --> 00:06:08,000 AND VERY, VERY GRATEFUL TO HAVE 127 00:06:08,000 --> 00:06:09,160 THE OPPORTUNITY TO LOOK AT ALL 128 00:06:09,160 --> 00:06:10,080 OF THE RESEARCH. 129 00:06:10,080 --> 00:06:12,720 >> THANK YOU. 130 00:06:12,720 --> 00:06:15,880 DR. CAROL ESPY WILSON. 131 00:06:15,880 --> 00:06:16,720 >> HELLO. 132 00:06:16,720 --> 00:06:19,840 I'M CAROL ESPY WILSON. 133 00:06:19,840 --> 00:06:25,360 I'M A PROFESSOR AT THE 134 00:06:25,360 --> 00:06:28,520 UNIVERSITY' MARYLAND. 135 00:06:28,520 --> 00:06:30,280 I RESEARCH SPEECH COMMUNICATION 136 00:06:30,280 --> 00:06:32,320 INCLUDING FUNDAMENTAL RESEARCH 137 00:06:32,320 --> 00:06:34,720 AND SPEECH PRODUCTION SPEECH 138 00:06:34,720 --> 00:06:36,440 PERCEPTION AND THEN DIGITAL 139 00:06:36,440 --> 00:06:38,320 SPEECH PROCESSING AND I APPLY 140 00:06:38,320 --> 00:06:42,360 THAT TO CLASSIFYING AND 141 00:06:42,360 --> 00:06:46,680 MONITORING MENTAL HEALTH 142 00:06:46,680 --> 00:06:47,280 ILLNESSES. 143 00:06:47,280 --> 00:06:49,320 AND LOOKING AT SOME VOICE 144 00:06:49,320 --> 00:06:50,960 DISORDERS AND ALSO SPEECH 145 00:06:50,960 --> 00:06:52,040 ENHANCEMENT AND SPEECH 146 00:06:52,040 --> 00:06:57,680 SEGREGATION. 147 00:06:57,680 --> 00:07:00,520 >> DR. LISA GOFFMAN. 148 00:07:00,520 --> 00:07:03,520 >> I'M AT THE CALLIER CENTER AT 149 00:07:03,520 --> 00:07:05,280 THE UNIVERSITY OF TEXAS AT 150 00:07:05,280 --> 00:07:07,240 DALLAS. 151 00:07:07,240 --> 00:07:10,160 I STUDY DEVELOPMENTAL LANGUAGE 152 00:07:10,160 --> 00:07:12,040 DISORDER IN CHILDREN WITH A 153 00:07:12,040 --> 00:07:13,840 FOCUS ON LANGUAGE AND SPEECH 154 00:07:13,840 --> 00:07:16,120 PRODUCTION AND MOTOR 155 00:07:16,120 --> 00:07:16,440 DEVELOPMENT. 156 00:07:16,440 --> 00:07:20,080 AND I'M INTERESTED IN SEQUENCE, 157 00:07:20,080 --> 00:07:21,240 PATTERN LEARNING AND 158 00:07:21,240 --> 00:07:22,600 INTERVENTION APPROACHES FOR 159 00:07:22,600 --> 00:07:23,440 THESE CHILDREN 160 00:07:23,440 --> 00:07:26,320 >> AND DR. ANDY GROVES. 161 00:07:26,320 --> 00:07:28,560 >> HI, I'M ANDY GROVES. 162 00:07:28,560 --> 00:07:30,760 IN THE DEPARTMENT OF 163 00:07:30,760 --> 00:07:33,080 NEUROSCIENCE AND MOLECULAR AND 164 00:07:33,080 --> 00:07:39,560 HUMAN GENETICS AT BAYLOR IN 165 00:07:39,560 --> 00:07:40,200 HOUSTON. 166 00:07:40,200 --> 00:07:42,640 HOW IT ACQUIRES ITS BEAUTIFUL -- 167 00:07:42,640 --> 00:07:45,200 AND THE PRECISE PATTERNING OF 168 00:07:45,200 --> 00:07:47,800 THE SENSORY HAIR CELLS. 169 00:07:47,800 --> 00:07:50,440 AND WE ALSO TRY AND STUDY THE 170 00:07:50,440 --> 00:07:52,280 REGENERATION OF INNER EAR THAT 171 00:07:52,280 --> 00:07:55,880 DOES NOT NORMALLY OCCUR IN THE 172 00:07:55,880 --> 00:07:58,160 AUDITORY SYSTEM BUT WE ARE 173 00:07:58,160 --> 00:08:00,840 HOPING ONE DAY WE MAY BE ABLE TO 174 00:08:00,840 --> 00:08:03,720 CONTRIBUTE TO THAT 175 00:08:03,720 --> 00:08:12,800 >> AND DR. HILLIS. 176 00:08:12,800 --> 00:08:13,480 >> HELLO. 177 00:08:13,480 --> 00:08:16,920 I'M CURRENTLY A PROFESSOR OF 178 00:08:16,920 --> 00:08:18,760 NEUROLOGY AT JOHNS HOPKINS. 179 00:08:18,760 --> 00:08:24,040 AND I AM STUDYING LANGUAGE 180 00:08:24,040 --> 00:08:26,600 RECOVERY AFTER STROKE USING 181 00:08:26,600 --> 00:08:29,880 BEHAVIORAL AND MULTI-MODALITY 182 00:08:29,880 --> 00:08:32,720 MECHANISMS TO IDENTIFY THE 183 00:08:32,720 --> 00:08:34,840 NEURAL MECHANISMS AFTER RECOVERY 184 00:08:34,840 --> 00:08:38,280 AND I CONDUCT TRIALS -- 185 00:08:38,280 --> 00:08:39,040 INNOVATIVE TREATMENTS AND 186 00:08:39,040 --> 00:08:41,960 CURRENTLY AT THE CLINICAL -- 187 00:08:41,960 --> 00:08:43,240 CONFERENCE AND JUST WAS 188 00:08:43,240 --> 00:08:46,800 MENTORING ONE OF OUR NIDCD 189 00:08:46,800 --> 00:08:48,200 SUPPORTED FELLOWS. 190 00:08:48,200 --> 00:08:50,280 I WAS VERY IMPRESSED BY THE 191 00:08:50,280 --> 00:08:51,640 FELLOWS THIS YEAR AND THE 192 00:08:51,640 --> 00:08:52,840 RESEARCH THAT THEY PRESENTED 193 00:08:52,840 --> 00:08:54,520 LAST NIGHT. 194 00:08:54,520 --> 00:08:58,840 IT'S A GREAT THING THAT NIDCD IS 195 00:08:58,840 --> 00:09:00,440 SUPPORTING. 196 00:09:00,440 --> 00:09:02,640 >> THANK YOU. 197 00:09:02,640 --> 00:09:04,800 DR. BOB HILLMAN. 198 00:09:04,800 --> 00:09:05,440 >> HI. 199 00:09:05,440 --> 00:09:06,640 I'M BOB HILLMAN. 200 00:09:06,640 --> 00:09:09,200 THE CO-DIRECTOR AND RESEARCH 201 00:09:09,200 --> 00:09:12,880 DIRECTOR AT THE CENTER FOR 202 00:09:12,880 --> 00:09:15,560 REQUIRE GEIAL SURGERY AND VOICE 203 00:09:15,560 --> 00:09:19,520 REHABILITATION AT MASSACHUSETTS 204 00:09:19,520 --> 00:09:20,600 GENERAL HOSPITAL IN BOSTON. 205 00:09:20,600 --> 00:09:26,480 I ASSESS, TREAT AND INVESTIGATE 206 00:09:26,480 --> 00:09:28,280 VOICE DISORDERS AND CURRENTLY 207 00:09:28,280 --> 00:09:30,400 INTERESTED IN THE USE OF 208 00:09:30,400 --> 00:09:33,160 MONITORING AND BIOFEEDBACK. 209 00:09:33,160 --> 00:09:34,400 7 210 00:09:34,400 --> 00:09:42,880 >> MR. BARBARA KELLEY. 211 00:09:42,880 --> 00:09:46,360 >> WE'RE THE LARGEST CONSUMER 212 00:09:46,360 --> 00:09:49,600 GROUP OF PEOPLE WITH HEARING 213 00:09:49,600 --> 00:09:50,400 LOSS IN THE UNITED STATES AND 214 00:09:50,400 --> 00:09:52,160 I'M PLEASED TO BE HERE TO 215 00:09:52,160 --> 00:09:53,480 REPRESENT THE CONSUMER AND 216 00:09:53,480 --> 00:09:55,040 PATIENT WHO LIVES DAILY WITH THE 217 00:09:55,040 --> 00:10:01,760 IMPACT OF HEARING LOSS. 218 00:10:01,760 --> 00:10:06,120 >> DR. -- LALWANI. 219 00:10:06,120 --> 00:10:10,440 >> I SPECIALIZE IN EARS AND -- 220 00:10:10,440 --> 00:10:13,520 AUDITORY DISORDERS -- AS WELL AS 221 00:10:13,520 --> 00:10:17,160 HERE AT COLUMBIA UNIVERSITY IN 222 00:10:17,160 --> 00:10:18,160 NEW YORK. 223 00:10:18,160 --> 00:10:21,040 I CREATE TOOLS LIKE MICRONEEDLES 224 00:10:21,040 --> 00:10:24,600 FOR PRECINCTS INNER EAR 225 00:10:24,600 --> 00:10:26,240 DIAGNOSIS AND THIS IS A GREAT 226 00:10:26,240 --> 00:10:28,600 HONOR TO SERVE ON THE NIDCD 227 00:10:28,600 --> 00:10:29,320 ADVISORY COUNCIL. 228 00:10:29,320 --> 00:10:34,240 FOR WHICH I THANK YOU. 229 00:10:34,240 --> 00:10:38,360 >> DR. CYNTHIA MORTON. 230 00:10:38,360 --> 00:10:38,960 >> HI. 231 00:10:38,960 --> 00:10:41,080 I'M CYNTHIA MORTON. 232 00:10:41,080 --> 00:10:44,560 I'M A MEDICAL GENETICIST AND I 233 00:10:44,560 --> 00:10:48,120 HAVE A PART-TIME FACULTY 234 00:10:48,120 --> 00:10:50,760 APPOINTMENT IN MANCHESTER CENTER 235 00:10:50,760 --> 00:10:53,160 OF AWEDDIAL GEE AND DEAFNESS AT 236 00:10:53,160 --> 00:10:55,880 THE UNIVERSITY OF MANCHESTER IN 237 00:10:55,880 --> 00:10:56,640 ENGLAND. 238 00:10:56,640 --> 00:10:58,960 I'VE HAD A LONG-STANDING 239 00:10:58,960 --> 00:11:02,120 INTEREST IN * THE GENETICS OF 240 00:11:02,120 --> 00:11:04,440 DEAFNESS AND IN MY LAB WE'RE 241 00:11:04,440 --> 00:11:08,400 STUDYING THE IMPLEMENTATION OF 242 00:11:08,400 --> 00:11:10,160 GENOMES IN NEWBORN HEARING 243 00:11:10,160 --> 00:11:13,480 SCREENING AND ALSO DOING SOME 244 00:11:13,480 --> 00:11:17,400 EDITING GENE EDITING OF A 245 00:11:17,400 --> 00:11:22,560 DISORDER KNOWN AS DFAN9. 246 00:11:22,560 --> 00:11:26,960 >> THE NEXT COUNCILMEMBER IS MS. 247 00:11:26,960 --> 00:11:28,760 SHE IS NOT PRESENT FOR THIS 248 00:11:28,760 --> 00:11:35,920 MENTION AND NEXT IS DR. D 249 00:11:35,920 --> 00:11:38,080 DR. DAN-SANES 250 00:11:38,080 --> 00:11:40,160 >> I'M AT NEW YORK UNIVERSITY. 251 00:11:40,160 --> 00:11:42,720 I STUDY DEVELOPMENTAL PLASTICITY 252 00:11:42,720 --> 00:11:44,840 CAN WHICH INCLUDES HOW YOUNG 253 00:11:44,840 --> 00:11:48,800 ANIMALS LEARN AUDITORY TASKS AND 254 00:11:48,800 --> 00:11:51,560 MORE SPECIFICALLY TO NIDCD HOW 255 00:11:51,560 --> 00:11:53,320 EARLY DEVELOPMENTAL HEARING LOSS 256 00:11:53,320 --> 00:11:56,800 AFFECTS THE DEVELOPMENT OF BRAIN 257 00:11:56,800 --> 00:11:59,680 AND AFFECTS BEHAVIOR SO OUR WORK 258 00:11:59,680 --> 00:12:02,080 LOOKS AT HOW TO RESCUE DEFICITS 259 00:12:02,080 --> 00:12:04,640 THAT OCCUR IN THE CENTRAL 260 00:12:04,640 --> 00:12:07,280 NERVOUS SYSTEM THROUGH GENETIC 261 00:12:07,280 --> 00:12:08,600 MECHANISMS. 262 00:12:08,600 --> 00:12:11,040 AND ALSO EXTENDS TO MECHANISMS 263 00:12:11,040 --> 00:12:13,240 LIKE HOW ANIMALS CAN IMPROVE BY 264 00:12:13,240 --> 00:12:14,800 LEARNING FROM EACH OTHER THROUGH 265 00:12:14,800 --> 00:12:16,680 A SOCIAL LEARNING MECHANISMS. 266 00:12:16,680 --> 00:12:19,280 >> THANK YOU. 267 00:12:19,280 --> 00:12:19,840 DR. BEN 268 00:12:19,840 --> 00:12:21,280 >> BRIDGE. 269 00:12:21,280 --> 00:12:24,840 >> I'M A PROFESSOR IN THE NEURO 270 00:12:24,840 --> 00:12:27,320 SCIENCE DEPARTMENT IN CLEVELAND. 271 00:12:27,320 --> 00:12:31,320 MY GROUP WORKS ON SNAPIC 272 00:12:31,320 --> 00:12:32,680 ORGANIZE OF DIFFERENT BRAIN 273 00:12:32,680 --> 00:12:33,200 AREAS. 274 00:12:33,200 --> 00:12:36,840 TRYING TO UNDERSTAND WHAT THE 275 00:12:36,840 --> 00:12:41,440 NEURAL COMPUTATION PERFORMED. 276 00:12:41,440 --> 00:12:43,080 AND A LOT OF OUR WORK THAT 277 00:12:43,080 --> 00:12:44,760 RELATES TO THE INSTITUTE IS 278 00:12:44,760 --> 00:12:48,720 RELATED TO OLFACTORY CIRCUITS 279 00:12:48,720 --> 00:12:52,600 AND WHAT ROLE THE NEURONS PLAY 280 00:12:52,600 --> 00:12:55,720 IN PROCESSING THE CENSOR VERY 281 00:12:55,720 --> 00:12:56,120 INFORMATION 282 00:12:56,120 --> 00:12:58,920 >> THANK YOU AND DR. HIGGIN. 283 00:12:58,920 --> 00:13:01,400 >> GOOD MORNING. 284 00:13:01,400 --> 00:13:02,880 I'M A PROFESSOR AT THE 285 00:13:02,880 --> 00:13:03,920 UNIVERSITY OF CALIFORNIA IN SAN 286 00:13:03,920 --> 00:13:05,160 FRANCISCO. 287 00:13:05,160 --> 00:13:08,440 SCHOOL OF NURSING. 288 00:13:08,440 --> 00:13:12,440 I'M IN GERIATRICS AND I RECENTLY 289 00:13:12,440 --> 00:13:14,000 JOINED THE COUNCIL AS WAS 290 00:13:14,000 --> 00:13:15,480 HONORED TO DO SO. 291 00:13:15,480 --> 00:13:18,840 I STUDY AGE RELATED HEARING 292 00:13:18,840 --> 00:13:19,240 LOSS. 293 00:13:19,240 --> 00:13:21,120 THE INTERACTIONS BETWEEN THE 294 00:13:21,120 --> 00:13:23,040 DIODES IN TERMS OF 295 00:13:23,040 --> 00:13:23,520 RELATIONSHIPS. 296 00:13:23,520 --> 00:13:25,160 I'M INTERESTED IN COMMUNICATION 297 00:13:25,160 --> 00:13:26,920 ACCESS WITH WITHIN THE HEALTH 298 00:13:26,920 --> 00:13:28,120 CARE SYSTEM AND ESPECIALLY 299 00:13:28,120 --> 00:13:30,320 INTERESTED IN THE IMPACT OF 300 00:13:30,320 --> 00:13:32,240 HEARING LOSS ON SAFECO MOON 301 00:13:32,240 --> 00:13:33,760 INDICATION WITHIN HEALTH CARE 302 00:13:33,760 --> 00:13:35,560 SETTINGS ACROSS ALL SETTINGS AND 303 00:13:35,560 --> 00:13:38,160 TRYING TO GET HEALTH CARE 304 00:13:38,160 --> 00:13:39,640 PRACTITIONERS TO UNDERSTAND WHAT 305 00:13:39,640 --> 00:13:41,000 HEARING LOSS IS LIKE. 306 00:13:41,000 --> 00:13:43,280 I'VE BEEN VERY ACTIVE IN THE 307 00:13:43,280 --> 00:13:45,080 HEARING LOSS ASSOCIATION OF 308 00:13:45,080 --> 00:13:46,400 AMERICA AND SERVED AS CHAIR FOR 309 00:13:46,400 --> 00:13:47,760 SEVERAL YEARS. 310 00:13:47,760 --> 00:13:49,840 AND STAY ACTIVE AT THE STATE 311 00:13:49,840 --> 00:13:50,440 LEVEL NOW. 312 00:13:50,440 --> 00:13:54,640 THANK YOU. 313 00:13:54,640 --> 00:13:57,920 >> AND WE HAVE THREE EX OFFICIO 314 00:13:57,920 --> 00:13:59,000 MEMBERS. 315 00:13:59,000 --> 00:14:00,800 DR. JUDY SCHAEFER IF YOU WANT TO 316 00:14:00,800 --> 00:14:03,800 SAY HELLO. 317 00:14:03,800 --> 00:14:10,720 >> I'M JUDY SCHAEFER. 318 00:14:10,720 --> 00:14:12,440 DOING POLICY AND PLANNING. 319 00:14:12,440 --> 00:14:15,080 MY AREAS OF SPECIALIZATION ARE 320 00:14:15,080 --> 00:14:16,760 DATA MANAGEMENT AND CODING, 321 00:14:16,760 --> 00:14:19,640 DISABILITY COMPENSATION, HEARING 322 00:14:19,640 --> 00:14:22,440 CONSERVATION AND DIAGNOSTIC 323 00:14:22,440 --> 00:14:25,160 AUDIOLOGY. 324 00:14:25,160 --> 00:14:26,360 >> DR. JEREMY NELSON. 325 00:14:26,360 --> 00:14:27,600 REPRESENTING THE DEPARTMENT OF 326 00:14:27,600 --> 00:14:30,280 DEFENSE. 327 00:14:30,280 --> 00:14:32,280 NOT PRESENT. 328 00:14:32,280 --> 00:14:33,480 OKAY. 329 00:14:33,480 --> 00:14:41,960 AND MIST CHRISTIE THEMANN. 330 00:14:41,960 --> 00:14:43,200 >> I'M REPRESENTING THE CENTERS 331 00:14:43,200 --> 00:14:44,680 FOR DISEASE CONTROL AND 332 00:14:44,680 --> 00:14:46,400 PREVENTION. 333 00:14:46,400 --> 00:14:48,520 OUR GROUP WORKS ON PREVENTING 334 00:14:48,520 --> 00:14:52,720 HEARING LOSS PRIMARILY IN 335 00:14:52,720 --> 00:14:54,600 WORKERS AND I ALSO SPEND A LOT 336 00:14:54,600 --> 00:14:58,160 OF TIME WORKING WITH FOLKS IN 337 00:14:58,160 --> 00:15:02,000 THE BIOSTATISTICS PROGRAM AND 338 00:15:02,000 --> 00:15:03,760 EPPIE STUDIES. 339 00:15:03,760 --> 00:15:05,720 THANK YOU. 340 00:15:05,720 --> 00:15:06,880 >> THANK YOU ALL. 341 00:15:06,880 --> 00:15:09,200 SO NEXT WE'LL GO TO 342 00:15:09,200 --> 00:15:10,120 CONSIDERATION OF THE MINUTES OF 343 00:15:10,120 --> 00:15:12,080 THE LAST MEETING. 344 00:15:12,080 --> 00:15:17,360 SO THE MINUTES OF THE 345 00:15:17,360 --> 00:15:17,960 JANUARY 28-29,2022 MEETING OF 346 00:15:17,960 --> 00:15:19,840 THE ADVISORY COUNCIL WERE 347 00:15:19,840 --> 00:15:21,720 RECENTLY POSTED TO THE 348 00:15:21,720 --> 00:15:24,200 ELECTRONIC COUNCIL BOOK AND I 349 00:15:24,200 --> 00:15:25,520 WONDER IF THERE ARE ANY 350 00:15:25,520 --> 00:15:26,960 ADDITIONS OR CORRECTIONS TO THE 351 00:15:26,960 --> 00:15:31,240 MINUTES? 352 00:15:31,240 --> 00:15:33,840 AND IF NOT, THERE IS A MOTION 353 00:15:33,840 --> 00:15:35,480 THAT THEY WOULD BE APPROVED AS 354 00:15:35,480 --> 00:15:39,880 WRITTEN? 355 00:15:39,880 --> 00:15:42,800 >> AND SECOND. 356 00:15:42,800 --> 00:15:44,520 >> SECOND. 357 00:15:44,520 --> 00:15:46,120 >> ALL IN FAVOR. 358 00:15:46,120 --> 00:15:46,560 >> OKAY. 359 00:15:46,560 --> 00:15:47,920 VERY GOOD. 360 00:15:47,920 --> 00:15:49,920 NEXT IS CONFIRMATION OF THE 361 00:15:49,920 --> 00:15:52,960 DATES FOR FUTURE COUNCIL 362 00:15:52,960 --> 00:15:53,600 MEETINGS. 363 00:15:53,600 --> 00:15:55,040 THE DATES HAVE BEEN ESTABLISHED 364 00:15:55,040 --> 00:15:57,160 AS SHOWN HERE. 365 00:15:57,160 --> 00:15:59,320 AND AS I MENTIONED EARLIER IN 366 00:15:59,320 --> 00:16:00,800 THE CLOSED SESSION WE'RE VERY 367 00:16:00,800 --> 00:16:03,160 MUCH HOPING TO HAVE OUR NEXT 368 00:16:03,160 --> 00:16:05,560 MEETING WHICH WILL BE 369 00:16:05,560 --> 00:16:07,040 SEPTEMBER 8-9 AS AN IN PERSON 370 00:16:07,040 --> 00:16:09,480 MEETING HERE IN BETHESDA. 371 00:16:09,480 --> 00:16:11,800 AND WE MADE A DECISION BASED ON 372 00:16:11,800 --> 00:16:13,680 THE FACT THAT THESE VIRTUAL 373 00:16:13,680 --> 00:16:15,280 MEETINGS SEEM TO GO FOR THE MOST 374 00:16:15,280 --> 00:16:18,240 PART PRETTY WELL THAT THE WINTER 375 00:16:18,240 --> 00:16:19,720 OF THE THREE MEETINGS WOULD BE 376 00:16:19,720 --> 00:16:20,800 HELD VIRTUALLY. 377 00:16:20,800 --> 00:16:23,560 AND WE'LL SEE HOW THAT GOES. 378 00:16:23,560 --> 00:16:26,400 WE MAY CHANGE THAT WITH TIME BUT 379 00:16:26,400 --> 00:16:30,600 WE'RE HOPING THAT WILL HELP US 380 00:16:30,600 --> 00:16:33,240 AVOID SOME WEATHER-RELATED 381 00:16:33,240 --> 00:16:35,360 DIFFICULTIES SO WE'LL HOLD THE 382 00:16:35,360 --> 00:16:37,480 FEBRUARY MEGA A VIRTUAL MEETING 383 00:16:37,480 --> 00:16:39,280 AND THEN MAY AND SEPTEMBER IN 384 00:16:39,280 --> 00:16:44,400 PERSON. 385 00:16:44,400 --> 00:16:48,040 SO NEXT I WANTED TO * SOME 386 00:16:48,040 --> 00:16:50,040 UPDATES TO YOU ABOUT VARIOUS 387 00:16:50,040 --> 00:16:53,120 THINGS GOING ON AROUND THE NIH. 388 00:16:53,120 --> 00:16:54,720 AVENUE WITHIN THE INSTITUTE. 389 00:16:54,720 --> 00:16:56,160 AND SO THE FIRST THING THAT I 390 00:16:56,160 --> 00:17:00,200 WANTED TO UPDATE YOU ON IS THE 391 00:17:00,200 --> 00:17:01,960 ADVANCED RESEARCH PROJECTS 392 00:17:01,960 --> 00:17:07,160 AGENCY FOR HEALTH ALSO CALLED 393 00:17:07,160 --> 00:17:07,960 ARPA-H. 394 00:17:07,960 --> 00:17:09,600 PLANS FOR THIS AGENCY ARE 395 00:17:09,600 --> 00:17:11,480 BEGINNING TO CRYSTALLIZE SO I 396 00:17:11,480 --> 00:17:12,640 WANTED TO PROVIDE A LITTLE BIT 397 00:17:12,640 --> 00:17:15,000 MORE INFORMATION. 398 00:17:15,000 --> 00:17:18,960 SO ARPA-H PROVIDES A PLATFORM 399 00:17:18,960 --> 00:17:21,280 FOR PROPELLING USE DRIVEN HIGH 400 00:17:21,280 --> 00:17:23,160 IMPACT BIOMEDICAL AND HEALTH 401 00:17:23,160 --> 00:17:24,160 RESEARCH. 402 00:17:24,160 --> 00:17:26,480 THE DRAFT MISSION OF THIS AGENCY 403 00:17:26,480 --> 00:17:29,560 IS TO BENEFIT THE HEALTH OF 404 00:17:29,560 --> 00:17:31,400 ALL-AMERICANS BY CATALYZING 405 00:17:31,400 --> 00:17:33,080 HEALTH BREAKTHROUGHS THAT CANNOT 406 00:17:33,080 --> 00:17:35,320 BE READILY BE ACCOMPLISHED 407 00:17:35,320 --> 00:17:37,200 THROUGH TRADITIONAL RESEARCH OR 408 00:17:37,200 --> 00:17:38,680 COMMERCIAL ACTIVITY. 409 00:17:38,680 --> 00:17:41,760 SO THIS REFERS TO THE NIH AS THE 410 00:17:41,760 --> 00:17:45,440 TRADITIONAL RESEARCH PATHWAY AND 411 00:17:45,440 --> 00:17:47,080 INDUSTRY AS THE COMMUNITY 412 00:17:47,080 --> 00:17:47,960 ACTIVITY. 413 00:17:47,960 --> 00:17:49,080 SO WE'RE TALKING ABOUT DOING 414 00:17:49,080 --> 00:17:51,640 THINGS THAT CANNOT BE DONE 415 00:17:51,640 --> 00:17:53,280 CURRENTLY. 416 00:17:53,280 --> 00:17:55,080 ARPA-H WILL SUPPORT 417 00:17:55,080 --> 00:17:56,840 TRANSFORMATIVE HIGH RISK HIGH 418 00:17:56,840 --> 00:17:59,920 REWARD BIOMEDICAL AND HEALTH 419 00:17:59,920 --> 00:18:01,280 RESEARCH TO ACCOMPLISH A FEW 420 00:18:01,280 --> 00:18:02,560 DIFFERENT THINGS. 421 00:18:02,560 --> 00:18:05,120 ONE, EMBRACE A SENSE OF URGENCY 422 00:18:05,120 --> 00:18:07,120 TO SPEED APPLICATION AND 423 00:18:07,120 --> 00:18:08,560 IMPLEMENTATION OF BREAKTHROUGHS 424 00:18:08,560 --> 00:18:10,720 AT VARIOUS LEVELS FROM POE 425 00:18:10,720 --> 00:18:12,160 ELECTRIC EULAR TO THE SOCIETAL 426 00:18:12,160 --> 00:18:15,160 SO THAT THEY SERVE ALL PEOPLE 427 00:18:15,160 --> 00:18:17,040 SECOND, BUILD CAPABILITIES AND 428 00:18:17,040 --> 00:18:19,680 PLATFORMS THAT ARE BROADLY 429 00:18:19,680 --> 00:18:21,440 APPLICABLE ACROSS A RANGE OF 430 00:18:21,440 --> 00:18:28,280 DISEASES AND CONDITIONS TO REV 431 00:18:28,280 --> 00:18:31,240 LOSING AYES HOW WE TREAT * 432 00:18:31,240 --> 00:18:32,760 DISEASE. 433 00:18:32,760 --> 00:18:34,880 THE IDEAS WITH THE DIRECT 434 00:18:34,880 --> 00:18:36,560 APPLICATION INTO SOLUTIONS FOR 435 00:18:36,560 --> 00:18:38,040 PATIENTS QUICKLY. 436 00:18:38,040 --> 00:18:40,600 AND LAST TO HELP OVERCOME MARKET 437 00:18:40,600 --> 00:18:43,240 FAILURES THROUGH CREATIVE 438 00:18:43,240 --> 00:18:45,400 SOLUTIONS INCENTIVES AND 439 00:18:45,400 --> 00:18:46,080 DERISKING. 440 00:18:46,080 --> 00:18:48,120 SO ONE IDEA THAT HAS BEEN 441 00:18:48,120 --> 00:18:49,800 BROUGHT FORWARD IS THAT IF SOME 442 00:18:49,800 --> 00:18:51,920 OF THE PROGRAMS DON'T FAIL THAT 443 00:18:51,920 --> 00:18:53,640 MEANS THAT WE'RE NOT TAKING 444 00:18:53,640 --> 00:18:54,440 ENOUGH RISK. 445 00:18:54,440 --> 00:18:57,000 WE'RE NOT TRYING TO PUSH THE 446 00:18:57,000 --> 00:18:58,080 ENVELOPE AS MUCH AS WE SHOULD 447 00:18:58,080 --> 00:18:58,560 BE. 448 00:18:58,560 --> 00:19:00,600 SO THIS IS REALLY A VERY 449 00:19:00,600 --> 00:19:02,720 DIFFERENT PARADIGM THAN WE SEE 450 00:19:02,720 --> 00:19:05,040 WITHIN THE NIH. 451 00:19:05,040 --> 00:19:06,920 ARPA-H WILL LEVERAGE AN APPROACH 452 00:19:06,920 --> 00:19:09,680 THAT WAS PIONEERED AT DARPA AND 453 00:19:09,680 --> 00:19:11,480 HAS BEEN APPLIED IN OTHER AREAS 454 00:19:11,480 --> 00:19:13,360 OF RESEARCH AND DEVELOPMENT SUCH 455 00:19:13,360 --> 00:19:15,440 AS THOSE SHOWN ON THE NEXT 456 00:19:15,440 --> 00:19:19,840 SLIDE. 457 00:19:19,840 --> 00:19:23,920 SO ECHOING MANY ELEMENTS OF THE 458 00:19:23,920 --> 00:19:27,080 DARPA MODEL ARPA HERE WILL BE 459 00:19:27,080 --> 00:19:28,200 CENTERED AROUND ENDURING 460 00:19:28,200 --> 00:19:29,560 TOLERANCE OR ACCEPTANCE AND 461 00:19:29,560 --> 00:19:32,080 INSTILLING A SENSE OF URGE SEE 462 00:19:32,080 --> 00:19:34,600 NIMBLENESS AND INNOVATION. 463 00:19:34,600 --> 00:19:37,440 ARPA-H IS LINKED TO NIH TO DRAW 464 00:19:37,440 --> 00:19:40,440 ON THE VAST KNOWLEDGE AND STRAIN 465 00:19:40,440 --> 00:19:41,000 STRUCTURE HERE. 466 00:19:41,000 --> 00:19:44,400 HOWEVER IT WILL REMAIN A 467 00:19:44,400 --> 00:19:46,720 DISTINCT AND AUTONOMOUS 468 00:19:46,720 --> 00:19:47,400 ORGANIZATION. 469 00:19:47,400 --> 00:19:49,320 IT WILL SEEK TO BRING ON THE 470 00:19:49,320 --> 00:19:52,800 MOST INNOVATIVE PEOPLE THAT WILL 471 00:19:52,800 --> 00:19:55,040 FORM ROBUSTLY DIVERSE AND 472 00:19:55,040 --> 00:19:56,600 COLLABORATIVE TEAMS. 473 00:19:56,600 --> 00:19:58,800 EQUITY WILL BE CONSIDERED AN 474 00:19:58,800 --> 00:20:00,480 ESSENTIAL ELEMENT OF ARPA-H AND 475 00:20:00,480 --> 00:20:02,880 WILL BE KEY TO ITS INTERNAL 476 00:20:02,880 --> 00:20:04,960 PRACTICES INCLUDING AND HIRING 477 00:20:04,960 --> 00:20:06,280 AND IN THE PROGRAMS THAT IT 478 00:20:06,280 --> 00:20:07,760 SUPPORTS AND THE AWARDS THAT ARE 479 00:20:07,760 --> 00:20:09,760 MADE. 480 00:20:09,760 --> 00:20:11,640 ARPA-H WILL SEEK TO BE NIMBLE 481 00:20:11,640 --> 00:20:14,200 AND LEAN IN ADMINISTERING ITS 482 00:20:14,200 --> 00:20:16,320 ORGANIZATION AND BUSINESS 483 00:20:16,320 --> 00:20:17,320 PROCESSES AND SCIENTIFIC 484 00:20:17,320 --> 00:20:18,600 PORTFOLIO. 485 00:20:18,600 --> 00:20:22,360 AND TO INJECT A SENSE OF URGENCY 486 00:20:22,360 --> 00:20:23,800 OPERATING UNDER TIME BOUND 487 00:20:23,800 --> 00:20:24,840 PRINCIPLES FOR BOTH THE PROGRAMS 488 00:20:24,840 --> 00:20:26,280 AND THE THE TENURE OF THE 489 00:20:26,280 --> 00:20:27,040 PEOPLE. 490 00:20:27,040 --> 00:20:29,120 THE OPEN AND TRANSPARENT ABOUT 491 00:20:29,120 --> 00:20:30,800 THESE PROCESSES AND APPROACHES 492 00:20:30,800 --> 00:20:33,360 AND ENGAGE STAKEHOLDERS ACROSS A 493 00:20:33,360 --> 00:20:35,440 WIDE RANGE OF SECTORS AND 494 00:20:35,440 --> 00:20:36,640 DISCIPLINES BOTH EARLY AND 495 00:20:36,640 --> 00:20:37,840 OFTEN. 496 00:20:37,840 --> 00:20:39,160 PROMOTE INDEPENDENCE AND 497 00:20:39,160 --> 00:20:40,960 ACCOUNTABILITY. 498 00:20:40,960 --> 00:20:42,360 REINFORCED BY AMBITIOUS 499 00:20:42,360 --> 00:20:44,160 MILESTONES AND METRICS AND SEEK 500 00:20:44,160 --> 00:20:45,800 TO HAVE BOLD PROGRAMS WITH THE 501 00:20:45,800 --> 00:20:48,120 ACCEPTANCE THAT NOT ALL WILL BE 502 00:20:48,120 --> 00:20:51,240 SUCCESSFUL BUT SHOULD OFFER 503 00:20:51,240 --> 00:20:53,440 IMPACT IN RETURN ON INVESTMENT. 504 00:20:53,440 --> 00:20:55,280 THE NEXT SLIDE. 505 00:20:55,280 --> 00:20:58,040 SO A LITTLE BIT ABOUT THE TIME 506 00:20:58,040 --> 00:21:01,000 LINE IS STARTING IN THE SUMMER 507 00:21:01,000 --> 00:21:02,200 OF 2021. 508 00:21:02,200 --> 00:21:03,160 WHEN THIS CONVERSATION FIRST 509 00:21:03,160 --> 00:21:04,240 BEGAN. 510 00:21:04,240 --> 00:21:06,360 THE OFFICE OF SCIENCE AND 511 00:21:06,360 --> 00:21:10,480 TECHNOLOGY POLICY OR OSTP 512 00:21:10,480 --> 00:21:13,080 PARTNERED WITH THE NIH TO PUB A 513 00:21:13,080 --> 00:21:15,240 COMMENTARY IN SCIENCE OUTLINING 514 00:21:15,240 --> 00:21:18,120 A VISION FOR ARPA-H AND WE HELD 515 00:21:18,120 --> 00:21:19,680 INFORMATION SESSION INCLUDING 516 00:21:19,680 --> 00:21:21,440 NUMEROUS MEETINGS WITH VERIFY 517 00:21:21,440 --> 00:21:24,960 YIPPING ORGANIZATIONS AND 518 00:21:24,960 --> 00:21:26,600 CONVENED 16 LISTENING SESSIONS 519 00:21:26,600 --> 00:21:29,760 WITH OVER 5,000 PARTICIPANTS. 520 00:21:29,760 --> 00:21:31,960 TO GET FEEDBACK FROM 521 00:21:31,960 --> 00:21:33,960 STAKEHOLDERS INCLUDING PATIENT 522 00:21:33,960 --> 00:21:36,200 ADVOCACY GROUPS, INDUSTRY AND 523 00:21:36,200 --> 00:21:36,920 SCIENTIFIC PROFESSIONAL 524 00:21:36,920 --> 00:21:38,840 ORGANIZATIONS. 525 00:21:38,840 --> 00:21:42,160 SO THE CURRENT STATUS OF ARPA-H 526 00:21:42,160 --> 00:21:47,120 IS THAT THE FY22 OMNIBUS BUDGET 527 00:21:47,120 --> 00:21:51,360 IT BILL APPROPRIATED $1 BILLION 528 00:21:51,360 --> 00:21:52,840 TO BE ABLE OVER THREE YEARS. 529 00:21:52,840 --> 00:21:55,280 IT PROVIDED FOR A PRESIDENTIALLY 530 00:21:55,280 --> 00:21:58,720 APPOINTED DIRECTOR, FLEXIBLE 531 00:21:58,720 --> 00:22:00,720 HIRING AND COMPENSATION 532 00:22:00,720 --> 00:22:02,360 AUTHORITIES, AWARD FLEXIBILITIES 533 00:22:02,360 --> 00:22:05,200 AND IT ALSO DETERMINED THAT THE 534 00:22:05,200 --> 00:22:08,080 HHS SECRETARY HAD THE AUTHORITY 535 00:22:08,080 --> 00:22:10,240 TO TRANSFER ARPA-H WITHIN THE 536 00:22:10,240 --> 00:22:12,440 HEALTH AND HUMAN SERVICES 537 00:22:12,440 --> 00:22:13,760 DEPARTMENT. 538 00:22:13,760 --> 00:22:16,080 SINCE THE APPROPRIATION THE 539 00:22:16,080 --> 00:22:19,200 SECRETARY HAS TRANSFERRED ARPA H 540 00:22:19,200 --> 00:22:20,160 TO NIH. 541 00:22:20,160 --> 00:22:22,600 THE ARPA-H DIRECTOR IT WAS 542 00:22:22,600 --> 00:22:24,400 DETERMINED THAT THE DIRECTOR 543 00:22:24,400 --> 00:22:26,800 WOULD REPORT DIRECTLY TO THE HHS 544 00:22:26,800 --> 00:22:28,000 SECRETARY. 545 00:22:28,000 --> 00:22:33,080 SO THE UNDERSTANDING NOW IS THAT 546 00:22:33,080 --> 00:22:35,080 ARPA-H WILL EXIST WITHIN THE NIH 547 00:22:35,080 --> 00:22:37,400 FOR ADMINISTRATIVE PURPOSES TO 548 00:22:37,400 --> 00:22:39,280 HELP LEVERAGE THE PROCESSES THAT 549 00:22:39,280 --> 00:22:41,160 THE NIH HAS IN PLACE BUT WILL 550 00:22:41,160 --> 00:22:42,400 NOT REPORT TO THE DIRECTOR OF 551 00:22:42,400 --> 00:22:43,040 THE NIH. 552 00:22:43,040 --> 00:22:46,240 SO THE DIRECTOR WILL REPORT TO 553 00:22:46,240 --> 00:22:48,760 THE SECRETARY OF HHS. 554 00:22:48,760 --> 00:22:53,280 PRESIDENT BIDEN HAS REQUESTED 555 00:22:53,280 --> 00:22:57,800 $5 BILLION IN THE FY23 BUDGET TO 556 00:22:57,800 --> 00:22:59,840 CONDUCT ITS IMMEDIATE FUTURE 557 00:22:59,840 --> 00:23:01,120 ACTIVITIES. 558 00:23:01,120 --> 00:23:04,560 SO WE AWAIT FURTHER NOTICE ABOUT 559 00:23:04,560 --> 00:23:06,360 PROGRESS ON THIS FRONT. 560 00:23:06,360 --> 00:23:08,680 I'M TOLD THAT IT'S LIKELY THAT 561 00:23:08,680 --> 00:23:11,280 AN INTERIM DIRECTOR WILL BE A 562 00:23:11,280 --> 00:23:12,760 POINTED BEFORE THE 563 00:23:12,760 --> 00:23:13,640 PRESIDENTIALLY APPOINTED 564 00:23:13,640 --> 00:23:14,720 DIRECTOR WILL BE NAMED. 565 00:23:14,720 --> 00:23:17,400 AND SO WE'RE HOPEFUL THIS WILL 566 00:23:17,400 --> 00:23:19,480 BE GETTING OFF THE GROUND IN THE 567 00:23:19,480 --> 00:23:23,280 NEAR FUTURE. 568 00:23:23,280 --> 00:23:25,840 SO TURNING TO ANOTHER INNOVATIVE 569 00:23:25,840 --> 00:23:27,600 PROGRAM I WANTED TO PROVIDE AN 570 00:23:27,600 --> 00:23:30,120 UPDATE ON THE PROGRAM CALLED ALL 571 00:23:30,120 --> 00:23:30,920 OF US. 572 00:23:30,920 --> 00:23:36,160 THE ORIGIN OF ALL OF US WAS IN 573 00:23:36,160 --> 00:23:36,600 MARCH 2015. 574 00:23:36,600 --> 00:23:40,040 AND AT THAT TIME THE NIH FORMED 575 00:23:40,040 --> 00:23:41,480 THE PRECISION MEDICINE 576 00:23:41,480 --> 00:23:44,360 INITIATIVE WORKING GROUP OF THE 577 00:23:44,360 --> 00:23:45,400 ADVISORY COMMITTEE TO THE 578 00:23:45,400 --> 00:23:46,840 DIRECTOR. 579 00:23:46,840 --> 00:23:48,920 THIS GROUP CONCLUDE EDITS WORK 580 00:23:48,920 --> 00:23:51,600 IN SEPTEMBER OF 2015 AND ISSUED 581 00:23:51,600 --> 00:23:53,440 A DETAILED REPORT THAT PROVIDED 582 00:23:53,440 --> 00:23:55,640 A FRAMEWORK FOR SETTING UP THE 583 00:23:55,640 --> 00:23:58,600 ALL OF US RESEARCH PROGRAM. 584 00:23:58,600 --> 00:24:06,720 THIS PROGRAM IS AN AMBITIOUS 585 00:24:06,720 --> 00:24:08,440 EFFORT TO GAIN INFORMATION IN 586 00:24:08,440 --> 00:24:10,200 ORDER TO ACCELERATE RESEARCH 587 00:24:10,200 --> 00:24:11,600 THAT CAN IMPROVE HEALTH. 588 00:24:11,600 --> 00:24:16,480 IT HAS CURRENTLY OVER 490,000 589 00:24:16,480 --> 00:24:17,160 PARTICIPANTS. 590 00:24:17,160 --> 00:24:19,640 SO WELL ON ITS WAY TO ENROLLING 591 00:24:19,640 --> 00:24:21,160 A MILLION OR MORE AND IT'S 592 00:24:21,160 --> 00:24:22,920 BUILDING ONE OF THE MOST DIVERSE 593 00:24:22,920 --> 00:24:26,000 HEALTH DATABASES IN HISTORY. 594 00:24:26,000 --> 00:24:28,000 PARTICIPANTS ARE ASKED TO TAKE 595 00:24:28,000 --> 00:24:30,720 ON-LINE SURVEYS, SHARE THEIR 596 00:24:30,720 --> 00:24:32,720 ELECTRONIC HEALTH RECORD AND MAY 597 00:24:32,720 --> 00:24:35,640 BE ASKED TO GIVE BLOOD AND URINE 598 00:24:35,640 --> 00:24:38,400 SAMPLES OR HAVE PHYSICAL 599 00:24:38,400 --> 00:24:38,920 MEASUREMENTS TAKEN. 600 00:24:38,920 --> 00:24:42,400 ALL OF US IS PART OF A NEW ERA 601 00:24:42,400 --> 00:24:45,400 IN WHICH TECHNOLOGY EXPERTS, 602 00:24:45,400 --> 00:24:46,600 COMMUNITY PARTNERS AND THE 603 00:24:46,600 --> 00:24:50,480 PUBLIC WORK TOGETHER TO DEVELOP 604 00:24:50,480 --> 00:24:52,160 INDIVIDUALIZED HEALTH CARE. 605 00:24:52,160 --> 00:24:54,400 THE RESEARCHER WORKBENCH ALLOWS 606 00:24:54,400 --> 00:24:58,040 THE DATA TO BE USED TO LEARN HOW 607 00:24:58,040 --> 00:24:59,400 BIOLOGY, LIFESTYLE AND 608 00:24:59,400 --> 00:25:01,600 ENVIRONMENT AFFECT HEALTH AND TO 609 00:25:01,600 --> 00:25:04,360 FIND WAYS TO TREAT OR PREVENT 610 00:25:04,360 --> 00:25:04,920 DISEASE. 611 00:25:04,920 --> 00:25:07,240 SO WE'RE PLEASED TO SAY THAT THE 612 00:25:07,240 --> 00:25:09,000 NIH WILL BE PROVIDING ADDITIONAL 613 00:25:09,000 --> 00:25:11,000 ALL OF US FUNDING OPPORTUNITIES 614 00:25:11,000 --> 00:25:11,680 SOON. 615 00:25:11,680 --> 00:25:14,320 SO ALL OF THESE DATA ARE 616 00:25:14,320 --> 00:25:17,960 AVAILABLE TO OUR RESEARCHERS TO 617 00:25:17,960 --> 00:25:20,880 ACCESS AND ASK IMPORTANT 618 00:25:20,880 --> 00:25:22,360 QUESTIONS ABOUT HEALTH RELEVANT 619 00:25:22,360 --> 00:25:24,400 TO OUR MISSION AREAS. 620 00:25:24,400 --> 00:25:25,960 SO YOU WILL BE HEARING MORE 621 00:25:25,960 --> 00:25:27,680 ABOUT THOSE OPPORTUNITIES SOON. 622 00:25:27,680 --> 00:25:29,360 AND NEXT I WANTED TO MENTION 623 00:25:29,360 --> 00:25:33,320 THAT DURING THE MONTH OF MAY WE 624 00:25:33,320 --> 00:25:36,880 CELEBRATE AND FOCUS ON 625 00:25:36,880 --> 00:25:37,560 DIVERSITY, INCLUSION AND 626 00:25:37,560 --> 00:25:39,680 LEADERSHIP TO ADVANCE THE 627 00:25:39,680 --> 00:25:41,760 ASIAN-AMERICAN AND NATIVE 628 00:25:41,760 --> 00:25:43,440 HAWAIIAN PACIFIC ISLANDER 629 00:25:43,440 --> 00:25:45,160 COMMUNITIES. 630 00:25:45,160 --> 00:25:46,840 THIS YEAR AS EXPRESSED IN THE 631 00:25:46,840 --> 00:25:49,720 STATEMENT WE'RE NO NOT A 632 00:25:49,720 --> 00:25:50,840 MONOLITH. 633 00:25:50,840 --> 00:25:52,520 OUR ATTENTION TURNS TO BETTER 634 00:25:52,520 --> 00:25:54,160 UNDERSTANDING THE DIVERSITY OF 635 00:25:54,160 --> 00:25:54,800 THESE COMMUNITY. 636 00:25:54,800 --> 00:26:01,200 WHEN WE CATEGORIZE THEM AS A 637 00:26:01,200 --> 00:26:02,600 SINGLE GROUP WE ARE AWARE THAT 638 00:26:02,600 --> 00:26:06,800 IT MASKS THE DIVERSITY OF THE 639 00:26:06,800 --> 00:26:09,160 CUSTOMS OF THE MANY REGIONS THAT 640 00:26:09,160 --> 00:26:10,040 ARE REPRESENTED. 641 00:26:10,040 --> 00:26:13,480 THIS MONOLITHIC VIEW ALSO MAKES 642 00:26:13,480 --> 00:26:15,720 IT DIFFICULT TO UNDERSTAND THE 643 00:26:15,720 --> 00:26:16,840 DISPARITIES WITHIN THE 644 00:26:16,840 --> 00:26:18,320 COMMUNITIES FROM EDUCATIONAL 645 00:26:18,320 --> 00:26:21,040 LEVEL TO SOCIOECONOMIC STATUS. 646 00:26:21,040 --> 00:26:24,560 SO THE NIDCD ALONG WITH THE 647 00:26:24,560 --> 00:26:25,560 BROADER NIH COMMUNITY CONTINUES 648 00:26:25,560 --> 00:26:28,960 TO ADDRESS ISSUES IN HEALTH CARE 649 00:26:28,960 --> 00:26:30,200 DISPARITIES, SCIENTIFIC 650 00:26:30,200 --> 00:26:31,960 WORKFORCE DIVERSITY AND 651 00:26:31,960 --> 00:26:33,600 DISCRIMINATION THAT IMPACT THESE 652 00:26:33,600 --> 00:26:38,440 COMMUNITIES. 653 00:26:38,440 --> 00:26:41,440 SO I WANTED TO TELL YOU MORE, I 654 00:26:41,440 --> 00:26:45,520 THINK WE MENTIONED THIS WHEN 655 00:26:45,520 --> 00:26:47,520 DR. -- SPOKE AT LAST MEETING BUT 656 00:26:47,520 --> 00:26:50,840 ON APRIL 7 OF THIS YEAR THE 657 00:26:50,840 --> 00:26:52,520 NIDCD AND THE NATIONAL INSTITUTE 658 00:26:52,520 --> 00:26:54,600 ON AGING HOSTED A WEBINAR. 659 00:26:54,600 --> 00:26:56,560 AND THE PURPOSE OF THE WEBINAR 660 00:26:56,560 --> 00:26:59,480 WAS TO HIGHLIGHT BASIC AND 661 00:26:59,480 --> 00:27:01,760 TRANSLATIONAL RESEARCH ON 662 00:27:01,760 --> 00:27:03,240 COMMUNICATION DISORDERS IN 663 00:27:03,240 --> 00:27:04,680 INDIVIDUALS WITH ALZHEIMER'S 664 00:27:04,680 --> 00:27:07,880 DISEASE AND RELATED DEMENTIAS 665 00:27:07,880 --> 00:27:09,120 SUPPORTED THROUGH THE EFFORTS OF 666 00:27:09,120 --> 00:27:13,040 THE NIDCD AND THE NIA. 667 00:27:13,040 --> 00:27:14,920 WE HAVE LONG STANDING SHARED 668 00:27:14,920 --> 00:27:16,240 INTEREST IN RESEARCH ON AGE 669 00:27:16,240 --> 00:27:18,680 RELATED HEARING LOSS AND BALANCE 670 00:27:18,680 --> 00:27:21,800 DISORDERS IN OLDER ADULTS AND 671 00:27:21,800 --> 00:27:24,120 THESE INTEREST HAVE RESULTED IN 672 00:27:24,120 --> 00:27:28,520 OUR TWO INSTITUTES ISSUING JOINT 673 00:27:28,520 --> 00:27:32,160 FUNDING ANNOUNCEMENTS ON THESE 674 00:27:32,160 --> 00:27:38,120 TOPICS. 675 00:27:38,120 --> 00:27:40,400 AND THE GOAL OF THIS WEBINAR WAS 676 00:27:40,400 --> 00:27:44,400 TO GIVE THE NIDCD GRANTEES AND D 677 00:27:44,400 --> 00:27:46,920 RECIPIENTS OF THE SUPPLEMENTAL 678 00:27:46,920 --> 00:27:48,600 FUNDING THE OPPORTUNITY TO SHARE 679 00:27:48,600 --> 00:27:50,840 SCIENCE AND SPARK NEW IDEAS AND 680 00:27:50,840 --> 00:27:51,920 COLLABORATIONS. 681 00:27:51,920 --> 00:27:54,080 SO AS YOU CAN SEE FROM THE SLIDE 682 00:27:54,080 --> 00:27:56,840 WE HAD A LONG LIST OF 683 00:27:56,840 --> 00:27:57,920 DISTINGUISHED SPEAKERS THAT 684 00:27:57,920 --> 00:27:59,800 PRESENTED ON STATE-OF-THE-ART 685 00:27:59,800 --> 00:28:01,560 SCIENCE FROM ANIMAL MODELS AND 686 00:28:01,560 --> 00:28:02,880 HUMAN STUDIES. 687 00:28:02,880 --> 00:28:05,320 YOU CAN WATCH THE WEBINAR BY 688 00:28:05,320 --> 00:28:07,960 VISITING THE NIH VIDEO CAST LINK 689 00:28:07,960 --> 00:28:10,040 ON THE SLIDE AND THAT CAN BE 690 00:28:10,040 --> 00:28:12,160 AVAILABLE TO YOU LATER AS WELL. 691 00:28:12,160 --> 00:28:16,560 THIS WAS A REALLY STIMULATING 692 00:28:16,560 --> 00:28:18,120 SEMINAR AND HAD A WONDERFUL 693 00:28:18,120 --> 00:28:20,760 DISCUSSION SO I URGE YOU ALL TO 694 00:28:20,760 --> 00:28:22,200 VIEW THAT. 695 00:28:22,200 --> 00:28:26,600 LAST FRIDAY MAY 13 THE NIDCD 696 00:28:26,600 --> 00:28:31,320 HELD A SYMPOSIUM CELEBRATING THE 697 00:28:31,320 --> 00:28:37,160 LONG AND E LUST WOOS CAREER OF 698 00:28:37,160 --> 00:28:41,360 CARTER WAES. 699 00:28:41,360 --> 00:28:44,200 * THE DAY LONG SYMPOSIUM 700 00:28:44,200 --> 00:28:47,520 HIGHLIGHTED THE IMPACT THAT THE 701 00:28:47,520 --> 00:28:49,400 DOCTOR HAS HAD ON THE CLINICAL 702 00:28:49,400 --> 00:28:51,440 PROGRAM AND THE CRITICAL 703 00:28:51,440 --> 00:28:52,560 CONTRIBUTIONS THAT HE HAS MADE 704 00:28:52,560 --> 00:28:55,400 TO HEAD AND NECK CANCER 705 00:28:55,400 --> 00:28:56,000 RESEARCH. 706 00:28:56,000 --> 00:28:58,800 THE DOCTOR IS RETIRING IN JULY. 707 00:28:58,800 --> 00:29:00,040 RECRUITMENT IS CURRENTLY 708 00:29:00,040 --> 00:29:01,920 UNDERWAY FOR HIS REPLACEMENT. 709 00:29:01,920 --> 00:29:05,400 SO CARTER WE WILL MISS YOU AND 710 00:29:05,400 --> 00:29:06,960 YOUR LEADERSHIP IN CLINICAL 711 00:29:06,960 --> 00:29:08,920 EXPERTISE. 712 00:29:08,920 --> 00:29:15,080 SO FAREWELL TO DR. VAN WAES. 713 00:29:15,080 --> 00:29:17,200 I WANTED TO GIVE YOU AN UPDATE 714 00:29:17,200 --> 00:29:18,880 ON THE DEVELOPMENT OF OUR NEXT 715 00:29:18,880 --> 00:29:19,960 FIVE YEARS STRATEGIC PLAN. 716 00:29:19,960 --> 00:29:22,600 SO EARLIER THIS MONTH THE DRAFT 717 00:29:22,600 --> 00:29:24,600 THEMES AND GOALS OF OUR NEW 718 00:29:24,600 --> 00:29:25,840 STRATEGIC PLAN WERE POSTED ON 719 00:29:25,840 --> 00:29:28,240 THE NIDCD WEBSITE FOR PUBLIC 720 00:29:28,240 --> 00:29:29,080 COMMENT. 721 00:29:29,080 --> 00:29:31,760 THE DRAFT WAS SHARED WITH ALL 722 00:29:31,760 --> 00:29:34,600 NIDCD GRANTEES AND PROFESSIONAL 723 00:29:34,600 --> 00:29:36,120 AND SCIENTIFIC ORGANIZATIONS 724 00:29:36,120 --> 00:29:38,120 THAT HAVE AN INTEREST IN THE 725 00:29:38,120 --> 00:29:39,720 NIDCD'S MISSION. 726 00:29:39,720 --> 00:29:42,560 AND ON THE NEXT SLIDE I WILL 727 00:29:42,560 --> 00:29:45,440 SHOW YOU THOSE THEMES. 728 00:29:45,440 --> 00:29:50,160 SO THE DRAFT PLAN HAS SIX OVER 729 00:29:50,160 --> 00:29:51,600 ARCHING SCIENTIFIC THEMES AND 730 00:29:51,600 --> 00:29:53,840 THERE ARE AT LEAST THREE GOALS 731 00:29:53,840 --> 00:29:56,800 THAT CORRESPOND P. THE NIDCD 732 00:29:56,800 --> 00:29:58,880 DEVELOPED THESE THEMES * AND 733 00:29:58,880 --> 00:30:01,160 GOALS IN CONJUNCTION WITH INPUT 734 00:30:01,160 --> 00:30:02,400 FROM THE SCIENTIFIC COMMUNITY 735 00:30:02,400 --> 00:30:03,080 LAST YEAR. 736 00:30:03,080 --> 00:30:05,160 THE DRAFT THEMES AND GOALS ARE 737 00:30:05,160 --> 00:30:07,480 BASED ON AN ASSESSMENT OF THE 738 00:30:07,480 --> 00:30:09,480 RESEARCH AREAS THAT REPRESENT 739 00:30:09,480 --> 00:30:11,560 THE GREATEST SCIENTIFIC 740 00:30:11,560 --> 00:30:13,320 OPPORTUNITIES AND ADDRESS THE 741 00:30:13,320 --> 00:30:14,560 GREATEST PUBLIC HEALTH NEEDS 742 00:30:14,560 --> 00:30:18,640 OVER THE NEXT 5-10 YEARS FOR THE 743 00:30:18,640 --> 00:30:19,680 SEVEN MISSION AREAS IN THE 744 00:30:19,680 --> 00:30:21,120 NIDCD. 745 00:30:21,120 --> 00:30:24,200 AND SO THESE INCLUDE ONE TO 746 00:30:24,200 --> 00:30:26,600 CAPITALIZE ON ADVANCES IN BASIC 747 00:30:26,600 --> 00:30:27,200 RESEARCH. 748 00:30:27,200 --> 00:30:29,280 TO ENHANCE OUR UNDERSTANDING OF 749 00:30:29,280 --> 00:30:30,760 NORMAL FUNCTION AND DISORDER 750 00:30:30,760 --> 00:30:32,160 PROCESSES. 751 00:30:32,160 --> 00:30:34,840 TWO, TO DEVELOP AND IMPROVE 752 00:30:34,840 --> 00:30:36,160 MODEL SYSTEMS TO INFORM 753 00:30:36,160 --> 00:30:37,000 RESEARCH. 754 00:30:37,000 --> 00:30:39,280 THREE TO PROMOTE A PRECISION 755 00:30:39,280 --> 00:30:41,160 MEDICINE APPROACH TO PREVENTION, 756 00:30:41,160 --> 00:30:43,000 DIAGNOSIS AND TREATMENT. 757 00:30:43,000 --> 00:30:46,120 FOUR, TO TRANSLATE AND I'M 758 00:30:46,120 --> 00:30:48,040 POLICE ME. 759 00:30:48,040 --> 00:30:50,040 SCIENTIFIC ADVANCEMENTS. 760 00:30:50,040 --> 00:30:52,360 NEXT TO FACILITATE THE USE OF 761 00:30:52,360 --> 00:30:54,680 BEST PRACTICES AND BIOMEDICAL 762 00:30:54,680 --> 00:30:55,640 DATA SCIENCE. 763 00:30:55,640 --> 00:30:59,040 AND FINALLY TO HARNESS ADVANCE 764 00:30:59,040 --> 00:31:01,960 TECHNOLOGY TIME PROVE 765 00:31:01,960 --> 00:31:03,200 PREVENTION, DIAGNOSIS AND 766 00:31:03,200 --> 00:31:03,880 TREATMENT. 767 00:31:03,880 --> 00:31:06,040 AND NEXT IN THESE THEMES AND 768 00:31:06,040 --> 00:31:08,880 THESE ARE ACCOMPANIED BY SEVERAL 769 00:31:08,880 --> 00:31:11,080 NIH CROSSCUTTING PRIORITIES 770 00:31:11,080 --> 00:31:12,520 WHICH INCLUDE RESEARCH TRAINING 771 00:31:12,520 --> 00:31:15,360 AND CAREER DEVELOPMENT. 772 00:31:15,360 --> 00:31:16,960 SCIENTIFIC WORKFORCE. 773 00:31:16,960 --> 00:31:19,280 WORKFORCE DIVERSITY. 774 00:31:19,280 --> 00:31:20,280 GLOBAL HEALTH AND WOMEN'S 775 00:31:20,280 --> 00:31:21,680 HEALTH. 776 00:31:21,680 --> 00:31:26,080 YOU CAN READ MORE DETAILS ABOUT 777 00:31:26,080 --> 00:31:27,560 THESE DRAFT THEMES ALONG WITH 778 00:31:27,560 --> 00:31:31,320 THE ASSOCIATED GOALS BY VISITING 779 00:31:31,320 --> 00:31:34,160 THE NIDCD WEBSITE AND CLICK BE 780 00:31:34,160 --> 00:31:43,080 ON THE PDF DOCUMENT. 781 00:31:43,080 --> 00:31:45,440 AND THAT'S THE END OF MY 782 00:31:45,440 --> 00:31:47,280 COMMENTS. 783 00:31:47,280 --> 00:31:50,720 AND SO NOW THE NEXT ORDER OF 784 00:31:50,720 --> 00:31:53,960 BUSINESS IS THE BUDGET REPORT. 785 00:31:53,960 --> 00:31:57,200 SO I'LL WAIT A MOMENT FOR GINGER 786 00:31:57,200 --> 00:31:58,920 TO GET THE SLIDES UP. 787 00:31:58,920 --> 00:32:02,800 IT'S USUALLY GIVEN BY MR. ERIK 788 00:32:02,800 --> 00:32:05,360 WILLIAMS WHO'S THE CHIEF BUDGET 789 00:32:05,360 --> 00:32:05,800 OFFICER. 790 00:32:05,800 --> 00:32:11,000 HE HAD A FAMILY EMERGENCY SO WAS 791 00:32:11,000 --> 00:32:13,240 NOT ABLE TO BE WITH US TODAY SO 792 00:32:13,240 --> 00:32:15,040 I'M GOING TO TAKE US THROUGH 793 00:32:15,040 --> 00:32:19,560 THESE FEW SLIDES OF THE BUDGET. 794 00:32:19,560 --> 00:32:21,440 PRESIDENT BIDEN SIGNED THE 795 00:32:21,440 --> 00:32:22,880 CURRENT SPENDING BILL. 796 00:32:22,880 --> 00:32:24,320 WE HAVE FOUR CONTINUING 797 00:32:24,320 --> 00:32:25,520 RESOLUTIONS THIS YEAR. 798 00:32:25,520 --> 00:32:27,440 WE WERE VERY HAPPY TO HAVE A 799 00:32:27,440 --> 00:32:29,720 BUDGET. 800 00:32:29,720 --> 00:32:34,840 THE FINAL ENACTED BUDGET IS 801 00:32:34,840 --> 00:32:37,200 $514.9 MILLION WHICH REPRESENT A 802 00:32:37,200 --> 00:32:40,200 3.4% INCREASE IN FUNDING. 803 00:32:40,200 --> 00:32:43,640 AND I WANTED TO MENTION THAT 804 00:32:43,640 --> 00:32:46,760 NONCOMPETING AWARDS ARE FULLY 805 00:32:46,760 --> 00:32:47,840 REFUNDED AND THAT IS GOOD NEWS 806 00:32:47,840 --> 00:32:48,800 FOR EVERYONE. 807 00:32:48,800 --> 00:32:50,960 YOU CAN SEE WHAT THE BREAK DOWN 808 00:32:50,960 --> 00:32:52,840 OF THE BUDGET IS. 809 00:32:52,840 --> 00:32:56,800 IN THE FIRST FEW LINES FY22 810 00:32:56,800 --> 00:33:00,280 BULGE IS ON THE RIGHT WITH 21 811 00:33:00,280 --> 00:33:02,360 BUDGET TO THE LEFT FOR 812 00:33:02,360 --> 00:33:05,240 COMPARISON AND SO THE RPG AWARDS 813 00:33:05,240 --> 00:33:07,040 ARE SHOWN FIRST AND YOU CAN SEE 814 00:33:07,040 --> 00:33:08,560 THAT THE LION'S SHARE OF THE 815 00:33:08,560 --> 00:33:11,520 FUNDING IN THIS CATEGORY IS FOR 816 00:33:11,520 --> 00:33:13,520 NONCOMPETING AWARDS FOLLOWED BY 817 00:33:13,520 --> 00:33:15,680 COMPETING AWARDS. 818 00:33:15,680 --> 00:33:18,880 WE ALSO HAVE A BUDGET AS ROGER 819 00:33:18,880 --> 00:33:20,120 MILLER MENTIONED WHICH IS 820 00:33:20,120 --> 00:33:25,080 REQUIRED THAT WE SPEND EVERY 821 00:33:25,080 --> 00:33:27,600 YEAR. 822 00:33:27,600 --> 00:33:29,280 THIS SHOWS THE BUDGET FOR 823 00:33:29,280 --> 00:33:30,720 INDIVIDUAL AND INSTITUTIONAL 824 00:33:30,720 --> 00:33:31,720 TRAINING GRANTS. 825 00:33:31,720 --> 00:33:37,360 AS WELL AS OUR CONTRACTS, OUR 826 00:33:37,360 --> 00:33:38,720 INTRAMURAL CONTRACT IS A LITTLE 827 00:33:38,720 --> 00:33:41,440 UNDER 10% OF OUR TOTAL BUDGET 828 00:33:41,440 --> 00:33:43,240 AND THEN A BUDGET FORECAST 829 00:33:43,240 --> 00:33:47,040 RESEARCH MANAGEMENT AND SUPPORT. 830 00:33:47,040 --> 00:33:49,120 THE NEXT COUPLE OF SLIDES SHOW 831 00:33:49,120 --> 00:33:53,040 THE SUCCESS RATES FOR FUNDING 832 00:33:53,040 --> 00:33:55,880 ACROSS THE NIH COMPARED WITH THE 833 00:33:55,880 --> 00:33:57,080 NIDCD. 834 00:33:57,080 --> 00:33:59,160 AND SO THE NIDCD IS IN THE BLUE 835 00:33:59,160 --> 00:34:02,560 BARS AND YOU CAN SEE THAT THE 836 00:34:02,560 --> 00:34:04,240 NIDCD SUCCESS RATES DO EXCEED 837 00:34:04,240 --> 00:34:07,760 THE RATES OF SUCCESS ACROSS THE 838 00:34:07,760 --> 00:34:09,320 WHOLE NIH SHOWN BY THE ORANGE 839 00:34:09,320 --> 00:34:13,760 LINE. 840 00:34:13,760 --> 00:34:15,560 -- THESE ARE SHOWN FOR THE 841 00:34:15,560 --> 00:34:16,880 RESEARCH PROJECT GRANTS ON THE 842 00:34:16,880 --> 00:34:19,520 TOP AND NIDCD AND NIH 843 00:34:19,520 --> 00:34:22,200 FELLOWSHIPS ON THE BOTTOM. 844 00:34:22,200 --> 00:34:24,440 AND I THINK THAT IS THE LAST 845 00:34:24,440 --> 00:34:25,000 SLIDE. 846 00:34:25,000 --> 00:34:25,440 YES. 847 00:34:25,440 --> 00:34:31,360 OKAY. 848 00:34:31,360 --> 00:34:31,920 ALL RIGHT. 849 00:34:31,920 --> 00:34:35,280 AND SO NEXT WE HAVE REPORT OF 850 00:34:35,280 --> 00:34:37,880 THE DIVISION OF SCIENTIFIC 851 00:34:37,880 --> 00:34:48,280 PROGRAMS BY DR. COOPER. 852 00:34:49,960 --> 00:34:51,480 >> GOOD AFTERNOON, ALL. 853 00:34:51,480 --> 00:34:54,800 I KNOW I'M IN THE TIME SLOT AS A 854 00:34:54,800 --> 00:34:57,280 DIRECTOR OF THE DIVISION OF 855 00:34:57,280 --> 00:34:58,960 SCIENTIFIC PROGRAMS BUT I 856 00:34:58,960 --> 00:35:01,040 ACTUALLY AM USING THIS TIME TO 857 00:35:01,040 --> 00:35:05,480 PROVIDE AN UPDATE FROM THE NIDCD 858 00:35:05,480 --> 00:35:06,560 IMPLEMENTATION COMMITTEE. 859 00:35:06,560 --> 00:35:09,360 YOU'LL RECALL THAT IN JANUARY I 860 00:35:09,360 --> 00:35:10,920 PROVIDED A RESPONSE TO MANY OF 861 00:35:10,920 --> 00:35:13,760 THE RECOMMENDATIONS IN THE 862 00:35:13,760 --> 00:35:16,480 ADVISORY COUNCIL'S DIVERSITY 863 00:35:16,480 --> 00:35:17,880 REPORT. 864 00:35:17,880 --> 00:35:19,520 ACTIONS AND ACTIVITIES ARE 865 00:35:19,520 --> 00:35:22,040 CONTINUING AT A GOOD PACE. 866 00:35:22,040 --> 00:35:24,480 AND THE COMMITTEE WHICH I CHAIR 867 00:35:24,480 --> 00:35:28,400 -- AGREED THAT YOU SHOULD HEAR 868 00:35:28,400 --> 00:35:32,920 ABOUT AND I HOPE WILL BE PLEASED 869 00:35:32,920 --> 00:35:34,400 ABOUT THE PROGRESS JUST SINCE MY 870 00:35:34,400 --> 00:35:39,440 JANUARY REPORT. 871 00:35:39,440 --> 00:35:41,680 HERE IS A QUICK REMINDER OF THE 872 00:35:41,680 --> 00:35:43,440 COMMITTEE AND FOR WHOM I'M 873 00:35:43,440 --> 00:35:44,200 SPEAKING TODAY. 874 00:35:44,200 --> 00:35:46,080 WE'RE REPRESENTATIVE OF VARIOUS 875 00:35:46,080 --> 00:35:48,680 PARTS OF NIDCD AND I KNOW THAT I 876 00:35:48,680 --> 00:35:50,560 SPEAK FOR THE GROUP WHEN I SAY 877 00:35:50,560 --> 00:35:54,400 THAT WE ALL SHARE A COMMITMENT 878 00:35:54,400 --> 00:35:57,920 TO CHANGE IN ISSUES AND WORKING 879 00:35:57,920 --> 00:36:00,400 TO ADDRESS MANY OF THOSE ISSUES 880 00:36:00,400 --> 00:36:02,320 THAT WERE RAISED IN YOUR 881 00:36:02,320 --> 00:36:07,280 DIVERSITY REPORT. 882 00:36:07,280 --> 00:36:09,640 THIS SLIDE ILLUSTRATES JUST A 883 00:36:09,640 --> 00:36:11,640 SAMPLING OF RECENT ACTIVITIES 884 00:36:11,640 --> 00:36:13,080 SINCE THE JANUARY COUNCIL WITH 885 00:36:13,080 --> 00:36:15,720 ALL THREE REPRESENTING WHAT I 886 00:36:15,720 --> 00:36:17,520 CONSIDER AN OVER ARCHING 887 00:36:17,520 --> 00:36:18,600 RECOMMENDATION FROM THE 888 00:36:18,600 --> 00:36:19,240 DIVERSITY REPORT. 889 00:36:19,240 --> 00:36:23,320 THAT IS REACH OUT, PROVIDE 890 00:36:23,320 --> 00:36:25,160 OPPORTUNITIES, EXPAND. 891 00:36:25,160 --> 00:36:28,160 THE WEBINAR IN FEBRUARY WAS LED 892 00:36:28,160 --> 00:36:32,240 BY -- ALBERTO -- OUR TRAINING 893 00:36:32,240 --> 00:36:35,280 OFFICER AND JOANNE -- THE CHIEF 894 00:36:35,280 --> 00:36:37,320 OF OUR OFFICE OF HEALTH 895 00:36:37,320 --> 00:36:38,640 COMMUNICATION AND PUBLIC 896 00:36:38,640 --> 00:36:39,400 LIAISON. 897 00:36:39,400 --> 00:36:41,280 THROUGH THEIR COMMITMENT AND 898 00:36:41,280 --> 00:36:44,480 EFFORTS WE HAD A SUCCESSFUL AND 899 00:36:44,480 --> 00:36:49,760 INFORMATIVE 30 MINUTE OVERVIEW 900 00:36:49,760 --> 00:36:51,720 OF OUR NEW EXTRAMURAL 901 00:36:51,720 --> 00:36:54,800 OPPORTUNITIES TO ENHANCE THE 902 00:36:54,800 --> 00:36:56,840 DIVERSITY OF NIDCD RESEARCH 903 00:36:56,840 --> 00:36:57,680 WORKFORCE. 904 00:36:57,680 --> 00:36:59,480 THE OVERVIEW WAS FOLLOWED BY A 905 00:36:59,480 --> 00:37:02,960 LIVE Q&A WITH NIDCD STAFF. 906 00:37:02,960 --> 00:37:05,600 IN THE WHOLE PROGRAM WHICH WAS 907 00:37:05,600 --> 00:37:09,000 RECORDED WAS PUT ON OUR NIDCD 908 00:37:09,000 --> 00:37:10,640 WEBSITE FOR THOSE WHO WERE 909 00:37:10,640 --> 00:37:12,240 UNABLE TO WATCH LIVE AND ALSO 910 00:37:12,240 --> 00:37:14,720 FOR THOSE FUTURE APPLICANTS AS 911 00:37:14,720 --> 00:37:16,040 THEY COME TO LEARN ABOUT THIS 912 00:37:16,040 --> 00:37:18,800 PROGRAM. 913 00:37:18,800 --> 00:37:20,200 THE NATIONAL BLACK ASSOCIATION 914 00:37:20,200 --> 00:37:22,280 FOR SPEECH LANGUAGE AND HEARING 915 00:37:22,280 --> 00:37:24,280 HELD ITS ANNUAL CONVENTION IN 916 00:37:24,280 --> 00:37:27,720 MARCH AND THREE NIDCD STAFF MADE 917 00:37:27,720 --> 00:37:29,360 TWO DIFFERENT PRESENTATIONS IN 918 00:37:29,360 --> 00:37:31,360 AN EFFORT TO REACH OUT TO THIS 919 00:37:31,360 --> 00:37:33,840 MEMBERSHIP AND GET THEM FAMILIAR 920 00:37:33,840 --> 00:37:35,560 WITH NIDCD. 921 00:37:35,560 --> 00:37:41,480 THE MEXIC NEXT -- CONVENTION WIE 922 00:37:41,480 --> 00:37:43,960 IN THE SPRING IN WASHINGTON, 923 00:37:43,960 --> 00:37:51,360 D.C. 924 00:37:51,360 --> 00:37:53,240 A PILOT PROGRAM WAS IN DIRECT 925 00:37:53,240 --> 00:37:56,320 RESPONSE TO THE REPORTS URGING 926 00:37:56,320 --> 00:37:59,360 THAT NIDCD NEEDED TO DO MORE TO 927 00:37:59,360 --> 00:38:01,520 REACH OUT TO HIGH SCHOOL AND 928 00:38:01,520 --> 00:38:03,160 UNDERGRAD WEIGHTS FROM DIVERSE 929 00:38:03,160 --> 00:38:03,720 BACKGROUNDS. 930 00:38:03,720 --> 00:38:09,320 THIS PILOT WAS OFFERING NIDCD 931 00:38:09,320 --> 00:38:12,080 RO1PIs A CHANCE TO INVOLVE 932 00:38:12,080 --> 00:38:13,760 SUCH INDIVIDUALS IN THEIR LAB 933 00:38:13,760 --> 00:38:15,160 AND CLINIC AND RESEARCH FOR A 934 00:38:15,160 --> 00:38:17,000 SUMMER EXPERIENCE. 935 00:38:17,000 --> 00:38:18,600 APPLICATIONS HAVE BEEN REVIEWED 936 00:38:18,600 --> 00:38:21,120 AND SEVEN AWARDS HAVE BEEN MADE 937 00:38:21,120 --> 00:38:23,680 TO PIs FROM ALL OF OUR MISSION 938 00:38:23,680 --> 00:38:25,960 AREAS TO ALLOW THESE STUDENTS A 939 00:38:25,960 --> 00:38:28,360 FIRST RESEARCH OPPORTUNITY. 940 00:38:28,360 --> 00:38:29,640 WE WILL BE CONSIDERING NEXT 941 00:38:29,640 --> 00:38:32,040 STEPS IN DETERMINING SUCCESS AS 942 00:38:32,040 --> 00:38:33,720 WELL AS THE FUTURE OF THIS 943 00:38:33,720 --> 00:38:39,760 ACTIVITY. 944 00:38:39,760 --> 00:38:41,520 ON THIS SLIDE YOU'LL SEE A 945 00:38:41,520 --> 00:38:43,160 SCREEN SHOT OF THAT PORTION OF 946 00:38:43,160 --> 00:38:45,760 OUR WEBSITE WHICH WITH A CALL 947 00:38:45,760 --> 00:38:47,400 BUILDING A DIVERSE SCIENTIFIC 948 00:38:47,400 --> 00:38:50,440 WORKFORCE. 949 00:38:50,440 --> 00:38:52,760 I -- I MENTIONED THIS IN JANUARY 950 00:38:52,760 --> 00:38:57,160 -- HOW AMAZING THIS SITE WAS. 951 00:38:57,160 --> 00:39:00,360 THIS WEBSITE IN MY MIND LEVELS 952 00:39:00,360 --> 00:39:02,680 THE PLAYING FIELD FOR ALL 953 00:39:02,680 --> 00:39:05,320 POTENTIAL APPLICANTS ESPECIALLY 954 00:39:05,320 --> 00:39:08,600 THOSE MORE JUNIOR INVESTIGATORS 955 00:39:08,600 --> 00:39:11,280 FROM PERHAPS MORE LOW RESOURCE 956 00:39:11,280 --> 00:39:15,760 INSTITUTIONS. 957 00:39:15,760 --> 00:39:18,640 WE HAVE AN ENTIRE SESSION 958 00:39:18,640 --> 00:39:21,640 ENTITLED HOW TO APPLY FOR A GRAM 959 00:39:21,640 --> 00:39:23,960 INCLUDING IN THE RED BOX SAMPLE 960 00:39:23,960 --> 00:39:29,640 GRANT APPLICATIONS. 961 00:39:29,640 --> 00:39:33,880 IN JANUARY -- SINCE JANUARY 962 00:39:33,880 --> 00:39:36,280 WE'VE ADDED A THIRD APPLICATION 963 00:39:36,280 --> 00:39:38,520 AND SUMMARY STATEMENT AND THUS 964 00:39:38,520 --> 00:39:40,320 NOW WE HAVE EXAMPLES FROM ACROSS 965 00:39:40,320 --> 00:39:42,120 OUR MISSION AREAS. 966 00:39:42,120 --> 00:39:45,440 AT LAST COUNT WE HAD ALMOST 500 967 00:39:45,440 --> 00:39:47,200 HITS ON THIS SITE. 968 00:39:47,200 --> 00:39:49,080 WE'RE NOW TALKING ABOUT NEXT 969 00:39:49,080 --> 00:39:52,040 STEPS OF WHAT OTHER GRANT 970 00:39:52,040 --> 00:39:54,800 MECHANISMS SUCH AS SBIRs OR 971 00:39:54,800 --> 00:39:57,200 OUR OWN EARLY CAREER RESEARCH 972 00:39:57,200 --> 00:39:58,280 PROGRAM THAT WOULD BE 973 00:39:58,280 --> 00:39:59,960 PARTICULARLY HELPFUL TO HAVE 974 00:39:59,960 --> 00:40:02,080 EXAMPLES FOR POTENTIAL 975 00:40:02,080 --> 00:40:03,480 APPLICANTS. 976 00:40:03,480 --> 00:40:06,720 SINCE JANUARY A NUMBER OF GRANTS 977 00:40:06,720 --> 00:40:08,280 SOLICITATIONS RELATED TO 978 00:40:08,280 --> 00:40:10,080 DIVERSITY, INCLUSION AND EQUITY 979 00:40:10,080 --> 00:40:13,040 AND ACCESSIBILITY HAVE BEEN 980 00:40:13,040 --> 00:40:15,920 ISSUED AND SEVERAL NIDCD HAS LED 981 00:40:15,920 --> 00:40:19,400 OR COSPONSORED. 982 00:40:19,400 --> 00:40:23,040 THE MOST EXCITING IS OUR VERY 983 00:40:23,040 --> 00:40:25,400 OWN NIDCD RESEARCH OPPORTUNITIES 984 00:40:25,400 --> 00:40:27,600 FOR NEW INVESTIGATORS TO PROMOTE 985 00:40:27,600 --> 00:40:29,200 WORKFORCE DIVERSITY. 986 00:40:29,200 --> 00:40:32,280 IT'S AN RO1 OPPORTUNITY WHICH 987 00:40:32,280 --> 00:40:35,040 WAS DEVELOPED AND LED BY DSP 988 00:40:35,040 --> 00:40:38,120 STAFF KELLEY KING, JANET SEAR 989 00:40:38,120 --> 00:40:41,120 AND SUSAN SULLIVAN AND ALSO 990 00:40:41,120 --> 00:40:43,800 MELISSA STICK AND BECKY WAGNER 991 00:40:43,800 --> 00:40:45,960 MILLER. 992 00:40:45,960 --> 00:40:47,520 THIS INITIATIVE WHICH WILL BE 993 00:40:47,520 --> 00:40:52,600 PEER REVIEWED BY A SPECIAL NIDCD 994 00:40:52,600 --> 00:40:56,160 REVIEW COMMITTEE HAS AS ITS 995 00:40:56,160 --> 00:41:00,200 PURPOSE -- TO SOLICIT APPEAR 996 00:41:00,200 --> 00:41:04,280 FLIP CASES THAT PROMOTE 997 00:41:04,280 --> 00:41:05,320 INDEPENDENT RESEARCH PROJECTS 998 00:41:05,320 --> 00:41:08,160 THAT ARE WITHIN THE SPECIFIC 999 00:41:08,160 --> 00:41:08,640 MISSION. 1000 00:41:08,640 --> 00:41:10,400 THIS PROGRAM IS INTENDED TO 1001 00:41:10,400 --> 00:41:12,840 SUPPORT EARLY STAGE AND NEW 1002 00:41:12,840 --> 00:41:14,760 INVESTIGATORS FROM DIVERSE 1003 00:41:14,760 --> 00:41:16,400 BACKGROUNDS. 1004 00:41:16,400 --> 00:41:18,400 INCLUDING THOSE FROM GROUPS 1005 00:41:18,400 --> 00:41:20,280 UNDER REPRESENTED IN THE HEALTH 1006 00:41:20,280 --> 00:41:22,480 REPRESENTED SCIENCES. 1007 00:41:22,480 --> 00:41:25,160 A UNIQUE ASPECT OF THIS 1008 00:41:25,160 --> 00:41:26,960 OPPORTUNITY IS THAT NO 1009 00:41:26,960 --> 00:41:29,000 PRELIMINARY DATA ARE REQUIRED. 1010 00:41:29,000 --> 00:41:31,760 WITH THE HOPE AGAIN OF LEVELING 1011 00:41:31,760 --> 00:41:33,280 THAT PLAYING FIELD AND 1012 00:41:33,280 --> 00:41:34,840 ENCOURAGING APPLICATIONS FROM 1013 00:41:34,840 --> 00:41:36,600 INDIVIDUALS WHO MIGHT NOT BE 1014 00:41:36,600 --> 00:41:39,280 READY TO SUBMIT THAT TRADITIONAL 1015 00:41:39,280 --> 00:41:40,360 RO1. 1016 00:41:40,360 --> 00:41:42,560 YOU'LL NOTE FROM THE SLIDE THAT 1017 00:41:42,560 --> 00:41:44,360 THERE ARE SEVERAL SUBMISSION 1018 00:41:44,360 --> 00:41:44,920 DATES. 1019 00:41:44,920 --> 00:41:47,120 TO GET THE MESSAGE OUT ABOUT 1020 00:41:47,120 --> 00:41:48,720 THIS OPPORTUNITY BEYOND THE 1021 00:41:48,720 --> 00:41:51,600 STANDARD APPEARANCE IN THE NIH 1022 00:41:51,600 --> 00:41:53,520 GUIDE TO GRANTS AND CONTRACTS 1023 00:41:53,520 --> 00:41:56,560 WE'VE CONTACTED SOME OF YOU OUR 1024 00:41:56,560 --> 00:41:57,960 CURRENT INVESTIGATORS 1025 00:41:57,960 --> 00:42:00,280 HISTORICALLY BLACK COLLEGES AND 1026 00:42:00,280 --> 00:42:02,800 UNIVERSITIES, MINORITY SERVED 1027 00:42:02,800 --> 00:42:05,480 INSTITUTIONS AS WELL AS 1028 00:42:05,480 --> 00:42:07,560 INVESTIGATORS, PIs WHO HAVE 1029 00:42:07,560 --> 00:42:08,880 SUBMITTED IN THE PAST TWO YEARS 1030 00:42:08,880 --> 00:42:12,120 BUT THEY'VE BEEN UNSUCCESSFUL. 1031 00:42:12,120 --> 00:42:13,760 THERE HAS BEEN ALREADY A GREAT 1032 00:42:13,760 --> 00:42:16,200 DEAL OF INTEREST IN THIS 1033 00:42:16,200 --> 00:42:17,880 ANNOUNCEMENT AND WE'RE VERY 1034 00:42:17,880 --> 00:42:23,320 HOPEFUL FOR A ROBUST RESPONSE. 1035 00:42:23,320 --> 00:42:28,320 ON THE NEXT TWO SLIDES YOU'LL 1036 00:42:28,320 --> 00:42:30,200 SEE EXAMPLES OF RECENT 1037 00:42:30,200 --> 00:42:35,280 ANNOUNCEMENTS THAT WERE PROTECT- 1038 00:42:35,280 --> 00:42:35,840 APPROPRIATE. 1039 00:42:35,840 --> 00:42:37,720 THESE ARE REQUEST FOR 1040 00:42:37,720 --> 00:42:38,600 APPLICATIONS. 1041 00:42:38,600 --> 00:42:41,680 SOCIAL, ETHICAL AND BEHAVIORAL 1042 00:42:41,680 --> 00:42:42,800 IMPLICATIONS, RESEARCH ON 1043 00:42:42,800 --> 00:42:44,800 DISPARITIES AND COVID TESTING 1044 00:42:44,800 --> 00:42:47,560 AMONG UNDERSERVED AND VULNERABLE 1045 00:42:47,560 --> 00:42:49,120 POPULATIONS OR A COMMUNITY 1046 00:42:49,120 --> 00:42:53,320 ENGAGED RESEARCH ON ON RAPID 1047 00:42:53,320 --> 00:42:55,360 TESTING AMONG UNDERSERVED AND 1048 00:42:55,360 --> 00:42:58,000 VULNERABLE POPULATIONS. 1049 00:42:58,000 --> 00:43:06,240 TWO ADDITIONAL ANNOUNCEMENTS -- 1050 00:43:06,240 --> 00:43:08,040 NOTICES OF SPECIAL INTEREST 1051 00:43:08,040 --> 00:43:10,000 ADMINISTRATIVE SUPPLEMENTS TO 1052 00:43:10,000 --> 00:43:11,600 RECOGNIZE EXCELLENCE AND 1053 00:43:11,600 --> 00:43:13,120 DIVERSITY AND EQUITY AND 1054 00:43:13,120 --> 00:43:15,080 INCLUSION AND ACCESSIBILITY 1055 00:43:15,080 --> 00:43:17,000 MENTORSHIP AND INCREASING UP 1056 00:43:17,000 --> 00:43:18,760 TAKE OF EVIDENCE BASED SCREENING 1057 00:43:18,760 --> 00:43:21,200 IN DIVERSE POPULATIONS ACROSS 1058 00:43:21,200 --> 00:43:22,080 THE LIFE-SPAN. 1059 00:43:22,080 --> 00:43:24,640 AND JUST A REMINDER EVEN IF WE 1060 00:43:24,640 --> 00:43:26,400 HAPPEN TO MISS THE CHANCE TO 1061 00:43:26,400 --> 00:43:28,880 SIGN ON TO ONE OF THESE 1062 00:43:28,880 --> 00:43:30,720 INITIATIVES WE FIND OUT AFTER 1063 00:43:30,720 --> 00:43:33,160 IT'S PUBLISHED WE STILL HAVE THE 1064 00:43:33,160 --> 00:43:35,280 OPPORTUNITY TO FUND OR CO-FOUND 1065 00:43:35,280 --> 00:43:37,480 AN APPLICATION THAT WAS 1066 00:43:37,480 --> 00:43:40,240 SUBMITTED IN OUR SCIENTIFIC AREA 1067 00:43:40,240 --> 00:43:43,000 AS YOU WILL RECALL AS EVIDENCED 1068 00:43:43,000 --> 00:43:44,680 BY AN EXAMPLE THAT WE DISCUSSED 1069 00:43:44,680 --> 00:43:46,000 EARLIER TODAY IN THE CLOSED 1070 00:43:46,000 --> 00:43:48,200 SESSION. 1071 00:43:48,200 --> 00:43:51,320 REST ASSURED SHOULD WE HAVE ANY 1072 00:43:51,320 --> 00:43:52,840 RESPONSES OR ACTIONS WE WILL 1073 00:43:52,840 --> 00:43:56,880 KEEP YOU INFORMED. 1074 00:43:56,880 --> 00:43:58,360 THE COMMITTEE WANTS YOU TO BE 1075 00:43:58,360 --> 00:44:00,280 AWARE OF UPCOMING ACTIVITIES AND 1076 00:44:00,280 --> 00:44:01,840 ISSUES. 1077 00:44:01,840 --> 00:44:04,560 IN JUNE WE WILL HAVE OUR VIRTUAL 1078 00:44:04,560 --> 00:44:08,240 BOOT CAMP FOR OUR DIVERSITY 1079 00:44:08,240 --> 00:44:09,320 SCHOLARS. 1080 00:44:09,320 --> 00:44:11,280 RECIPIENTS OF DIVERSITY 1081 00:44:11,280 --> 00:44:13,160 SUPPLEMENTS FROM FY21. 1082 00:44:13,160 --> 00:44:15,440 A PROGRAM THAT I MENTIONED IN 1083 00:44:15,440 --> 00:44:18,320 JANUARY. 1084 00:44:18,320 --> 00:44:20,840 ALBERTO -- OUR TRAINING OFFICER 1085 00:44:20,840 --> 00:44:23,680 WILL BE PROVIDING TO THESE 1086 00:44:23,680 --> 00:44:26,400 DIVERSITY SCHOLARS AND THEN A 1087 00:44:26,400 --> 00:44:27,480 LIVE OPPORTUNITY TO ASK 1088 00:44:27,480 --> 00:44:28,840 QUESTIONS. 1089 00:44:28,840 --> 00:44:32,040 THERE ARE CERTAINLY IN THE WORKS 1090 00:44:32,040 --> 00:44:34,800 ADDITIONAL NOSI AND FUNDING 1091 00:44:34,800 --> 00:44:37,000 OPPORTUNITIES ANNOUNCEMENTS * 1092 00:44:37,000 --> 00:44:38,760 AND WE WILL BE CONSIDERING OUR 1093 00:44:38,760 --> 00:44:39,920 PARTICIPATION AND LETTING YOU 1094 00:44:39,920 --> 00:44:40,760 KNOW ABOUT THOSE. 1095 00:44:40,760 --> 00:44:44,160 WE ARE AS YOU KNOW IN THE MIDST 1096 00:44:44,160 --> 00:44:45,960 IN THE PROCESS OF HIRING OUR 1097 00:44:45,960 --> 00:44:48,920 CHIEF DIVERSITY OFFICER. 1098 00:44:48,920 --> 00:44:50,720 AN AD HAS BEEN POSTED AND THE 1099 00:44:50,720 --> 00:44:52,240 SEARCH HAS CLOSED AND A 1100 00:44:52,240 --> 00:44:54,160 COMMITTEE IS REVIEWING THE 1101 00:44:54,160 --> 00:44:55,800 APPLICATIONS AND WE ANTICIPATE 1102 00:44:55,800 --> 00:44:57,000 THAT INTERVIEWS WILL BE 1103 00:44:57,000 --> 00:44:58,600 SCHEDULED AND HELD IN THE MONTHS 1104 00:44:58,600 --> 00:44:59,320 AHEAD. 1105 00:44:59,320 --> 00:45:03,560 IN SEPTEMBER AS PART OF THE 1106 00:45:03,560 --> 00:45:06,440 ANNUAL REPORT FROM OUR DIRECTOR 1107 00:45:06,440 --> 00:45:08,760 OF THE INTERMURAL DIVISION 1108 00:45:08,760 --> 00:45:12,920 YOU'LL HEAR ABOUT DEIA EFFORTS 1109 00:45:12,920 --> 00:45:15,040 IN THAT DIVISION AND THE 1110 00:45:15,040 --> 00:45:16,360 IMPLEMENTATION COMMITTEE IS 1111 00:45:16,360 --> 00:45:18,160 CONTINUING TO EXPLORE STRATEGIES 1112 00:45:18,160 --> 00:45:20,720 WHICH MIGHT ENHANCE DIVERSITY 1113 00:45:20,720 --> 00:45:22,800 AND MENTORING IN NIDCD RESEARCH 1114 00:45:22,800 --> 00:45:25,480 AND CLINICAL AWARDS. 1115 00:45:25,480 --> 00:45:30,000 ON BEHALF OF ALL OF THE MEMBERS 1116 00:45:30,000 --> 00:45:32,640 OF THE IMPLEMENTATION COMMITTEE 1117 00:45:32,640 --> 00:45:34,720 I SAY AGAIN THANK YOU AGAIN TO 1118 00:45:34,720 --> 00:45:37,040 THE COUNCIL FOR THE IDEAS AND 1119 00:45:37,040 --> 00:45:38,680 THE ENCOURAGEMENT THAT IS 1120 00:45:38,680 --> 00:45:40,400 CONTAINED IN THE DIVERSITY 1121 00:45:40,400 --> 00:45:41,280 REPORT. 1122 00:45:41,280 --> 00:45:42,960 WE HEARD YOU AND WE ARE TAKING 1123 00:45:42,960 --> 00:45:43,760 ACTION. 1124 00:45:43,760 --> 00:45:47,280 THANK YOU. 1125 00:45:47,280 --> 00:45:48,560 >> THANK YOU, JUDITH. 1126 00:45:48,560 --> 00:45:50,320 THAT IS ALL VERY EXCITING. 1127 00:45:50,320 --> 00:45:52,200 A LOT OF PROGRESS IN A SHORT 1128 00:45:52,200 --> 00:45:54,280 PERIOD OF TIME. 1129 00:45:54,280 --> 00:45:56,600 SO WE ARE A LITTLE BIT AHEAD OF 1130 00:45:56,600 --> 00:45:59,400 SCHEDULE AND WE ARE SCHEDULED TO 1131 00:45:59,400 --> 00:46:02,040 TAKE A BREAK AND RETURN AT 2:10 1132 00:46:02,040 --> 00:46:03,920 AND GIVEN THAT WE WILL BE HAVING 1133 00:46:03,920 --> 00:46:05,640 SPEAKERS THAT ARE COUNTING ON 1134 00:46:05,640 --> 00:46:08,240 STARTING AT 2:10 THAT WE'LL 1135 00:46:08,240 --> 00:46:09,840 BREAK FOR A LITTLE BIT LONGER 1136 00:46:09,840 --> 00:46:10,880 PERIOD OF TIME. 1137 00:46:10,880 --> 00:46:14,320 SO WE WILL SEE YOU ALL BACK AT 1138 00:46:14,320 --> 00:46:17,880 10 AFTER THE HOUR. 1139 00:46:17,880 --> 00:46:20,520 I AM VERY EXCITED TO INTRODUCE 1140 00:46:20,520 --> 00:46:22,320 OUR NEXT TWO SPEAKERS. 1141 00:46:22,320 --> 00:46:25,720 SO PLEASE JOIN ME IN WELCOMING 1142 00:46:25,720 --> 00:46:29,440 DR. TILAK RATNANATHE AND 1143 00:46:29,440 --> 00:46:31,360 DR. POORNA KUSHALNAGAR WHO WILL 1144 00:46:31,360 --> 00:46:33,600 DISCUSS EFFORTS TO INVOLVE DEAF 1145 00:46:33,600 --> 00:46:35,280 AND HARD OF HEARING INDIVIDUALS 1146 00:46:35,280 --> 00:46:37,800 IN SCIENCE AND RESEARCH. 1147 00:46:37,800 --> 00:46:39,800 DR. RATNANATHE IS AN ASSOCIATE 1148 00:46:39,800 --> 00:46:42,240 RESEARCH PROFESSOR OF BIOMEDICAL 1149 00:46:42,240 --> 00:46:43,880 ENGINEERING AT JOHNS HOPKINS 1150 00:46:43,880 --> 00:46:44,840 UNIVERSITY. 1151 00:46:44,840 --> 00:46:47,200 HE HAS AN INTEREST IN ANALYSIS 1152 00:46:47,200 --> 00:46:49,200 OF BRAIN STRUCTURES IMPLICATED 1153 00:46:49,200 --> 00:46:55,240 IN NEURO PSYCHIATRIC AND NEURAL 1154 00:46:55,240 --> 00:46:55,520 DISORDERS. 1155 00:46:55,520 --> 00:46:57,360 HE HAS BEEN HONORED TO INCREASE 1156 00:46:57,360 --> 00:46:59,920 THE DIVERSITY OF THOSE IN STEM 1157 00:46:59,920 --> 00:47:01,360 FIELDS THROUGH THE RECRUITMENT 1158 00:47:01,360 --> 00:47:03,240 OF DEAF AND HARD OF HEARING 1159 00:47:03,240 --> 00:47:03,840 STUDENTS. 1160 00:47:03,840 --> 00:47:06,120 HE RECEIVED THE PRESIDENTIAL 1161 00:47:06,120 --> 00:47:09,040 AWARD FOR EXCELLENCE IN SCIENCE 1162 00:47:09,040 --> 00:47:11,000 MATHEMATICS AND ENGINEERING 1163 00:47:11,000 --> 00:47:15,600 MENTORING FROM PRESIDENT OBAMA. 1164 00:47:15,600 --> 00:47:16,640 DR. KUSHALNAGAR IS A PROFESSOR 1165 00:47:16,640 --> 00:47:20,120 AND DIRECTOR OF THE CENTER FOR 1166 00:47:20,120 --> 00:47:23,000 DEAF HEALTH EQUITY AT GALLAUDET 1167 00:47:23,000 --> 00:47:24,720 UNIVERSITY. 1168 00:47:24,720 --> 00:47:26,920 HER PRIMARY RESEARCH INTEREST 1169 00:47:26,920 --> 00:47:30,360 ARE IN DEAF, HEALTH EQUITY AND 1170 00:47:30,360 --> 00:47:32,560 PATIENT REPORTED OUTCOMES 1171 00:47:32,560 --> 00:47:35,440 RESEARCH. 1172 00:47:35,440 --> 00:47:37,200 DR. KUSHALNAGAR WAS RECENTLY 1173 00:47:37,200 --> 00:47:39,400 AWARDED AN NIH COMMON FUND AWARD 1174 00:47:39,400 --> 00:47:45,040 IN THE NAME IS THE 1175 00:47:45,040 --> 00:47:46,640 TRANSFORMATIVE RESEARCH TO 1176 00:47:46,640 --> 00:47:48,800 ADVANCE HEALTH EQUITY AWARD. 1177 00:47:48,800 --> 00:47:51,680 THE TITLE OF HER PROJECT IS 1178 00:47:51,680 --> 00:47:53,360 USING TECHNOLOGY ENHANCED 1179 00:47:53,360 --> 00:47:55,480 APPROACHES TO ADVANCE CANCER 1180 00:47:55,480 --> 00:47:58,760 HEALTH EQUITY AMONG DIVERSE 1181 00:47:58,760 --> 00:48:00,520 DEAF, DEAF BLIND AND HARD OF 1182 00:48:00,520 --> 00:48:02,400 HEARING POPULATIONS. 1183 00:48:02,400 --> 00:48:06,680 SO WELCOME TO YOU BOTH. 1184 00:48:06,680 --> 00:48:12,760 I THINK TILAK IS SPEAKING FIRST. 1185 00:48:12,760 --> 00:48:13,560 >> THANK YOU VERY MUCH 1186 00:48:13,560 --> 00:48:19,920 DR. TUCCI. 1187 00:48:19,920 --> 00:48:22,480 -- OKAY. 1188 00:48:22,480 --> 00:48:32,960 LET ME SHARE THE SCREEN NOW. 1189 00:48:34,680 --> 00:48:37,160 CAN EVERYBODY SEE THE SCREEN? 1190 00:48:37,160 --> 00:48:37,640 >> YES. 1191 00:48:37,640 --> 00:48:37,920 >> OKAY. 1192 00:48:37,920 --> 00:48:40,240 THANK YOU. 1193 00:48:40,240 --> 00:48:43,440 I WOULD LIKE TO THANK YOU FOR 1194 00:48:43,440 --> 00:48:46,320 THE OPPORTUNITY TO TALK ABOUT 30 1195 00:48:46,320 --> 00:48:48,080 YEARS OF SCIENTISTS AND 1196 00:48:48,080 --> 00:48:52,040 CLINICIANS WITH HEARING LOSS AND 1197 00:48:52,040 --> 00:48:53,600 IN NIDCD RESEARCH AREAS. 1198 00:48:53,600 --> 00:48:55,840 AND I WOULD LIKE TO ACKNOWLEDGE 1199 00:48:55,840 --> 00:49:06,120 TWO PEOPLE -- DR. 1200 00:49:10,560 --> 00:49:14,880 SO IN SPRING OF 1989 -- AFTER A 1201 00:49:14,880 --> 00:49:16,760 SEMINAR I KNEW WHAT I WANT TO DO 1202 00:49:16,760 --> 00:49:18,040 FOR THE REST OF MY LIFE. 1203 00:49:18,040 --> 00:49:23,880 A YEAR LATER AT THE AG BELL 1204 00:49:23,880 --> 00:49:30,080 CONVENTION IN D.C. -- AND THAT 1205 00:49:30,080 --> 00:49:33,000 LED TO THE INVITATION. 1206 00:49:33,000 --> 00:49:35,120 AT THE SAME TIME I PICKED UP 1207 00:49:35,120 --> 00:49:45,640 THIS BOOK -- -- SO I WOULD LIKE 1208 00:49:46,000 --> 00:49:47,280 TO QUOTE SOMETHING THAT CAUGHT 1209 00:49:47,280 --> 00:49:51,040 MY ATTENTION. 1210 00:49:51,040 --> 00:49:54,560 THE NIDCD SHOULD LEAD THE EFFORT 1211 00:49:54,560 --> 00:49:56,800 TO RECRUIT DEAF INVESTIGATORS 1212 00:49:56,800 --> 00:50:03,160 AND CLINICIANS AND TO PURSUE THE 1213 00:50:03,160 --> 00:50:04,600 RECRUITMENT AND RESEARCH OF 1214 00:50:04,600 --> 00:50:06,280 INDIVIDUALS WITH COMMUNICATION 1215 00:50:06,280 --> 00:50:07,800 DISORDERS. 1216 00:50:07,800 --> 00:50:14,520 TOO OFTEN DEAFNESS AND 1217 00:50:14,520 --> 00:50:16,160 COMMUNICATION DISORDERS HAVE 1218 00:50:16,160 --> 00:50:18,080 BEEN GROUNDS FOR EMPLOYMENT 1219 00:50:18,080 --> 00:50:18,760 DISCRIMINATION. 1220 00:50:18,760 --> 00:50:20,800 THE NIDCD HAS A SPECIAL 1221 00:50:20,800 --> 00:50:22,920 RESPONSIBILITY TO ASSURE THAT 1222 00:50:22,920 --> 00:50:25,440 THESE CITIZENS ARE OFFERED EQUAL 1223 00:50:25,440 --> 00:50:26,400 OPPORTUNITY. 1224 00:50:26,400 --> 00:50:28,400 THAT WAS MUSIC TO MY EARS. 1225 00:50:28,400 --> 00:50:33,000 THE FOLLOWING YEAR FEBRUARY OF 1226 00:50:33,000 --> 00:50:36,040 '92 -- THERE WERE THREE PEOPLE 1227 00:50:36,040 --> 00:50:38,240 WITH HEARING LOSS. 1228 00:50:38,240 --> 00:50:48,760 MYSELF, DR. ATLER -- -- AND THEN 1229 00:50:52,800 --> 00:51:02,920 -- KAMATH. 1230 00:51:08,400 --> 00:51:12,920 A YEAR LATER WE WERE JOINED BY 1231 00:51:12,920 --> 00:51:22,160 -- HE WAS THE FIRST -- SO 30 1232 00:51:22,160 --> 00:51:24,880 YEARS LATER THERE WERE AT LEAST 1233 00:51:24,880 --> 00:51:29,200 15 PRESENTATIONS AND AT LEAST -- 1234 00:51:29,200 --> 00:51:31,840 ALL WITH HEARING LOSS. 1235 00:51:31,840 --> 00:51:34,080 IN PERSON NORMALLY WE HAVE 1236 00:51:34,080 --> 00:51:44,640 ANNUAL DINNER -- 20-25 ATTENDED 1237 00:51:46,320 --> 00:51:56,560 WITH HEARING LOSS. 1238 00:51:57,560 --> 00:51:59,240 WE HAVE HAD THREE IN THE LAST 1239 00:51:59,240 --> 00:52:01,000 YEAR. 1240 00:52:01,000 --> 00:52:06,800 THE LAST ONE MOST VIEWED PAPER 1241 00:52:06,800 --> 00:52:17,360 -- -- THE -- DR. BROOK HOUSER -- 1242 00:52:44,560 --> 00:52:52,920 AND IN 1994 -- WROTE A PAPER -- 1243 00:52:52,920 --> 00:52:59,320 SAYING THAT THE NUMBER -- WERE 1244 00:52:59,320 --> 00:53:01,440 UNDER REPRESENTED. 1245 00:53:01,440 --> 00:53:04,240 AMONG THE CADRE OF SCIENTISTS IN 1246 00:53:04,240 --> 00:53:07,880 RESEARCH. 1247 00:53:07,880 --> 00:53:16,560 AND THEN HE -- AND OVER THE 1248 00:53:16,560 --> 00:53:21,520 SUMMER PROGRAM -- I REMEMBER 1249 00:53:21,520 --> 00:53:28,960 ASKING A QUESTION -- HE ASKED -- 1250 00:53:28,960 --> 00:53:31,320 ME TO TAKE PART IN THE SUMMER 1251 00:53:31,320 --> 00:53:31,880 PROGRAM. 1252 00:53:31,880 --> 00:53:35,000 SO I DID. 1253 00:53:35,000 --> 00:53:45,560 AT THE SAME TIME -- LINA RICE -- 1254 00:53:45,920 --> 00:53:56,400 -- -- AND -- AT THE SAME TIME -- 1255 00:54:02,280 --> 00:54:08,680 -- THE SUMMER PROGRAM. 1256 00:54:08,680 --> 00:54:09,760 THE MICHIGAN PROGRAM 1257 00:54:09,760 --> 00:54:13,200 PARTICULARLY THE GALLAUDET 1258 00:54:13,200 --> 00:54:18,040 STUDENTS BUT NOT -- ---THOSE WHO 1259 00:54:18,040 --> 00:54:19,840 HAD COCHLEAR IMPLANTS AT THE 1260 00:54:19,840 --> 00:54:26,440 TIME LATER GOT PhD. 1261 00:54:26,440 --> 00:54:29,880 ON THE RIGHT-HAND SIDE -- 1262 00:54:29,880 --> 00:54:33,280 DEMONSTRATE THE DRAMATIC IMPACT 1263 00:54:33,280 --> 00:54:36,800 -- ALL OVER THE WORLD -- 1264 00:54:36,800 --> 00:54:47,360 PRODUCED -- -- AND WE HAVE ABOUT 1265 00:54:49,720 --> 00:54:51,840 40-50 PAPER PER YEAR AND THAT IS 1266 00:54:51,840 --> 00:54:54,200 THE PART OF WHAT WE OBTAINED -- 1267 00:54:54,200 --> 00:54:57,800 A POWER DYNAMIC SHIFT. 1268 00:54:57,800 --> 00:54:58,680 NOT THE SAME. 1269 00:54:58,680 --> 00:55:02,880 7 AND THEN WE BELIEVE THAT MORE 1270 00:55:02,880 --> 00:55:10,120 AND MORE PEOPLE -- AND 1271 00:55:10,120 --> 00:55:12,920 INDIVIDUAL COCHLEAR IMPLANTS -- 1272 00:55:12,920 --> 00:55:18,160 THAT MEANS MOST STUDENTS -- WANT 1273 00:55:18,160 --> 00:55:22,160 TO PAY BACK TO SOCIETY. 1274 00:55:22,160 --> 00:55:24,360 FORTUNATELY WE EMPHASIZED AT ONE 1275 00:55:24,360 --> 00:55:33,040 POINT -- AND THEREFORE -- AND WE 1276 00:55:33,040 --> 00:55:37,880 ACKNOWLEDGE -- NIDCD -- 1277 00:55:37,880 --> 00:55:45,720 SUPPLEMENT -- STANFORD -- AND 1278 00:55:45,720 --> 00:55:53,160 MANY TRAINEES WITH HEARING LOSS. 1279 00:55:53,160 --> 00:55:57,960 AND 1280 00:56:00,000 --> 00:56:02,760 AND ABOUT 18 MONTHS AGO 1281 00:56:02,760 --> 00:56:04,080 DR. TUCCI HAD A NICE 1282 00:56:04,080 --> 00:56:05,640 PRESENTATION AND SHOWED A SLIDE 1283 00:56:05,640 --> 00:56:15,960 -- SO WHAT I DID -- THROUGH THE 1284 00:56:15,960 --> 00:56:26,520 FREEDOM OF INFORMATION -- -- -- 1285 00:56:27,360 --> 00:56:32,960 -- AND REPORTED ON DIETARY 1286 00:56:32,960 --> 00:56:36,160 SUPPLEMENT FROM 1989 TO 2006. 1287 00:56:36,160 --> 00:56:46,680 AND WE HAVE ABOUT 15 OR 16 -- 1288 00:56:47,200 --> 00:56:57,680 SUPPLEMENTALS -- -- -- -- THREE 1289 00:57:07,160 --> 00:57:09,280 PhD STUDENTS AND THREE 1290 00:57:09,280 --> 00:57:12,040 POSTDOCS AND MANY INTERNS BUT WE 1291 00:57:12,040 --> 00:57:14,400 HAVE TO COMPLETE THE DATA. SO 1292 00:57:14,400 --> 00:57:16,080 WHAT WORKS? 1293 00:57:16,080 --> 00:57:22,800 CLEARLY VERTI VERTICAL MENTORING 1294 00:57:22,800 --> 00:57:25,200 WORKS. 1295 00:57:25,200 --> 00:57:32,960 WE HAVE 8PIs AND THREE -- -- 1296 00:57:32,960 --> 00:57:38,160 EDUCATIONAL -- AND OTHER 1297 00:57:38,160 --> 00:57:40,600 SCIENTISTS LEARN IN THE LAB. 1298 00:57:40,600 --> 00:57:51,120 7 AND THE PEDAGOGY -- WE RECRUIT 1299 00:57:55,040 --> 00:57:56,280 THROUGH SCHOLARSHIP AND 1300 00:57:56,280 --> 00:58:00,080 FINANCIAL AID. 1301 00:58:00,080 --> 00:58:03,400 AND WE ENCOURAGE -- RIGHT NOW 1302 00:58:03,400 --> 00:58:13,960 I'M TELLING PEOPLE TO -- -- AND 1303 00:58:15,200 --> 00:58:17,640 HAVE HYBRID CAPTIONING. 1304 00:58:17,640 --> 00:58:25,080 ONE NOTES AND LIVE CAPTIONS. 1305 00:58:25,080 --> 00:58:35,480 -- HISTORIC OUTCOMES. 1306 01:00:12,240 --> 01:00:13,720 CHALLENGES AND SOLUTIONS. 1307 01:00:13,720 --> 01:00:15,960 WE HAVE HALF A MILLION COLLEGE 1308 01:00:15,960 --> 01:00:24,840 STUDENTS WITH HEARING LOSS. 1309 01:00:24,840 --> 01:00:34,880 -- 1310 01:08:22,080 --> 01:08:24,000 >> THANK YOU SO MUCH TILAK FOR 1311 01:08:24,000 --> 01:08:26,520 THAT INSPIRATIONAL AND THOUGHT 1312 01:08:26,520 --> 01:08:27,920 PROVOKING TALK. 1313 01:08:27,920 --> 01:08:30,240 I LOVED IT AND WILL FOLLOW-UP 1314 01:08:30,240 --> 01:08:31,160 WITH YOU ABOUT SOME OF THE 1315 01:08:31,160 --> 01:08:32,000 QUESTIONS THAT YOU HAVE. 1316 01:08:32,000 --> 01:08:38,560 7 AND SO NOW POORNA, THANK YOU. 1317 01:08:38,560 --> 01:08:39,960 >> GOOD AFTERNOON, EVERYONE. 1318 01:08:39,960 --> 01:08:42,280 THANK YOU SO MUCH FOR INVITING 1319 01:08:42,280 --> 01:08:43,920 ME HERE TO SPEAK WITH YOU ALL 1320 01:08:43,920 --> 01:08:45,840 HERE TODAY. 1321 01:08:45,840 --> 01:08:46,960 IT'S MUCH APPRECIATED. 1322 01:08:46,960 --> 01:08:49,480 MY HAT IS OFF TO YOU 1323 01:08:49,480 --> 01:08:50,320 DR. RATNANATHE. 1324 01:08:50,320 --> 01:08:51,760 I'M SO APPRECIATIVE OF YOUR 1325 01:08:51,760 --> 01:08:53,800 RESEARCH AND THE IMPACT THAT IT 1326 01:08:53,800 --> 01:08:55,000 HAS HAD ON THE FIELD. 1327 01:08:55,000 --> 01:08:58,200 AGAIN, MY HAT IS OFF TO YOU AND 1328 01:08:58,200 --> 01:08:59,120 A GRACIOUS APPRECIATION. 1329 01:08:59,120 --> 01:09:02,520 7 I'M GOING TO BE SHARING MY 1330 01:09:02,520 --> 01:09:03,560 PROFESSIONAL AND PERSONAL 1331 01:09:03,560 --> 01:09:08,480 EXPERIENCE IN SCIENCE AND HOW IT 1332 01:09:08,480 --> 01:09:11,880 HAS IMPACTED THE INCLUSION AND 1333 01:09:11,880 --> 01:09:14,240 NONINCLUSION OF DEAF AND HARD OF 1334 01:09:14,240 --> 01:09:15,560 HEARING STUDENTS IN SCIENCE AND 1335 01:09:15,560 --> 01:09:23,960 RESEARCH. 1336 01:09:23,960 --> 01:09:26,960 WHAT SEE HERE ON THIS 1337 01:09:26,960 --> 01:09:29,600 PowerPoint ARE A VARIETY OF 1338 01:09:29,600 --> 01:09:32,920 PIECES OF MY JOURNEY IN HISTORY 1339 01:09:32,920 --> 01:09:34,600 AND EFFORTS INVOLVING SCIENCE 1340 01:09:34,600 --> 01:09:36,040 AND RESEARCH. 1341 01:09:36,040 --> 01:09:38,480 DURING MY PREDOCTORAL TRAINING 1342 01:09:38,480 --> 01:09:43,520 DURING THAT TIME OF 2002 TO 2007 1343 01:09:43,520 --> 01:09:48,360 -- IT WAS NOT WELL-KNOWN FOR 1344 01:09:48,360 --> 01:09:50,400 DEAF AND HARD OF HEARING 1345 01:09:50,400 --> 01:09:52,720 INDIVIDUALS TO HAVE LARGE SIZED 1346 01:09:52,720 --> 01:09:54,080 GRANTS AT THAT PARTICULAR TIME 1347 01:09:54,080 --> 01:09:57,800 AND MY EXPOSURE TO ROLE MODELS 1348 01:09:57,800 --> 01:10:00,920 WHO WERE DEAF AND HARD OF 1349 01:10:00,920 --> 01:10:04,800 HEARIHEARHEARING WAS VERY LIMITD 1350 01:10:04,800 --> 01:10:06,360 THOSE INDIVIDUALS DID NOT 1351 01:10:06,360 --> 01:10:08,840 IDENTIFY IF I HAD ROLE MODELS AS 1352 01:10:08,840 --> 01:10:10,440 WOMEN OR WOMEN OF COLOR AND AT 1353 01:10:10,440 --> 01:10:14,000 THAT TIME RESEARCH IDEAS WERE 1354 01:10:14,000 --> 01:10:15,720 BUILT ON COMMUNITY CONCERNS. 1355 01:10:15,720 --> 01:10:18,080 8 AND THEY WERE OFTEN TIMES NOT 1356 01:10:18,080 --> 01:10:21,520 IN THE REALM OF SIGN LANGUAGE 1357 01:10:21,520 --> 01:10:23,840 NOR WERE THEY FOCUSED ON DEAF 1358 01:10:23,840 --> 01:10:24,360 GAIN. 1359 01:10:24,360 --> 01:10:26,600 THEY WERE MORE SO FOCUSED ON THE 1360 01:10:26,600 --> 01:10:27,640 LOSS OF HEARING. 1361 01:10:27,640 --> 01:10:29,120 AND THE POPULATION OF 1362 01:10:29,120 --> 01:10:30,960 INDIVIDUALS REGARDLESS OF WHAT 1363 01:10:30,960 --> 01:10:32,680 CHANGE THEY USED OFTEN TIMES WAS 1364 01:10:32,680 --> 01:10:34,000 SPOKEN. 1365 01:10:34,000 --> 01:10:36,520 DURING MY DOCTORAL TRAINING 1366 01:10:36,520 --> 01:10:38,480 YEARS MY FIRST EFFORTS TO 1367 01:10:38,480 --> 01:10:40,720 INCLUDE DEAF AND HARD OF HEARING 1368 01:10:40,720 --> 01:10:45,160 PEOPLE IN THE FIELD -- IN 1369 01:10:45,160 --> 01:10:47,600 SPECIFIC IDENTIFICATION OF 1370 01:10:47,600 --> 01:10:50,680 ISSUES WERE COMMUNITY-BASED. 1371 01:10:50,680 --> 01:10:54,080 SO WE HAD A MENTAL HEALTH SUMMIT 1372 01:10:54,080 --> 01:10:55,520 WITH A VARIETY OF MEMBERS 1373 01:10:55,520 --> 01:10:57,040 INCLUDING RESEARCHERS, HEALTH 1374 01:10:57,040 --> 01:11:01,320 CARE PROFESSIONALS AND SO FORTH. 1375 01:11:01,320 --> 01:11:04,040 ALL OF US GATHERED TOGETHER TO 1376 01:11:04,040 --> 01:11:05,800 DISCUSS ISSUES THAT CONTRIBUTED 1377 01:11:05,800 --> 01:11:08,280 TO MENTAL HEALTH PROBLEMS IN THE 1378 01:11:08,280 --> 01:11:11,040 DEAF AND HARD OF HEARING 1379 01:11:11,040 --> 01:11:13,600 COMMUNITIES RESPECTIVELY AND I 1380 01:11:13,600 --> 01:11:15,160 SAY THIS BECAUSE THIS WAS A 1381 01:11:15,160 --> 01:11:17,920 CATALYST TO ALL OF US AT A 1382 01:11:17,920 --> 01:11:19,880 VARIETY OF LEVELS WITHIN THE 1383 01:11:19,880 --> 01:11:21,120 SCIENTIFIC FIELDS TO CONTRIBUTE 1384 01:11:21,120 --> 01:11:22,000 THESE IDEAS. 1385 01:11:22,000 --> 01:11:24,280 AND THIS IS THE CORE OF MY WORK 1386 01:11:24,280 --> 01:11:26,160 THAT I HAVE DONE THROUGHOUT MY 1387 01:11:26,160 --> 01:11:28,120 RESEARCH WITH NIH. 1388 01:11:28,120 --> 01:11:29,920 AT THE SAME TIME I APPLIED FOR 1389 01:11:29,920 --> 01:11:32,760 AN F31 GRANT AND I WAS THE FIRST 1390 01:11:32,760 --> 01:11:35,960 STUDENT IN MY PhD PROGRAM TO 1391 01:11:35,960 --> 01:11:38,000 APPLY. 1392 01:11:38,000 --> 01:11:39,600 THE PROGRAM AT THE TIME WAS 1393 01:11:39,600 --> 01:11:41,320 FAIRLY NEWLY FORMED. 1394 01:11:41,320 --> 01:11:43,400 IT WAS A DEVELOPMENTAL 1395 01:11:43,400 --> 01:11:46,560 NEUROSCIENCE PROGRAM. 1396 01:11:46,560 --> 01:11:48,360 AND I RECEIVED -- I DID NOT 1397 01:11:48,360 --> 01:11:49,440 RECEIVE THE FUNDING. 1398 01:11:49,440 --> 01:11:52,880 MY SCORING WAS UNABLE TO MEET 1399 01:11:52,880 --> 01:11:55,440 THE NEEDS AND THE APPLICATION 1400 01:11:55,440 --> 01:11:57,040 THEN WAS DENIED. 1401 01:11:57,040 --> 01:11:59,800 SO AT THAT TIME I WAS ALSO 1402 01:11:59,800 --> 01:12:01,240 CARING FOR TWO CHILDREN. 1403 01:12:01,240 --> 01:12:06,080 I WAS FOCUSED ON THINGS THAT 1404 01:12:06,080 --> 01:12:09,720 WERE A BIT DIFFERENT THAN A I AM 1405 01:12:09,720 --> 01:12:10,440 RIGHT NOW. 1406 01:12:10,440 --> 01:12:12,480 INDIVIDUALS WHO WERE 1407 01:12:12,480 --> 01:12:14,400 INTERPRETING MAY NOT HAVE BEEN 1408 01:12:14,400 --> 01:12:16,480 ADEPT AT DOING SO SO IN ORDER TO 1409 01:12:16,480 --> 01:12:18,600 KEEP UP WITH THE MAINTENANCE OF 1410 01:12:18,600 --> 01:12:21,160 MY CLASSES TO TAKE CARE OF MY 1411 01:12:21,160 --> 01:12:22,440 CHILDREN TO ENGAGE WITH THE 1412 01:12:22,440 --> 01:12:24,080 COMMUNITIES AND SO FORTH I WAS 1413 01:12:24,080 --> 01:12:26,360 AT A VERY DIFFERENT POINT IN MY 1414 01:12:26,360 --> 01:12:27,400 CAREER. 1415 01:12:27,400 --> 01:12:30,120 I THEN MOVED OVER TO MY 1416 01:12:30,120 --> 01:12:32,120 POSTDOCTORAL TRAINING AND THAT 1417 01:12:32,120 --> 01:12:36,280 WAS DURING 2008-2011 AND AT THE 1418 01:12:36,280 --> 01:12:38,960 TIME THERE WAS AN NIDCD FUNDING 1419 01:12:38,960 --> 01:12:42,040 TO DO A NATIONAL STUDY THAT WAS 1420 01:12:42,040 --> 01:12:43,600 FOCUSED ON THE QUALITY OF LIFE 1421 01:12:43,600 --> 01:12:45,720 SPECIFIC TO DEAF AND HARD OF 1422 01:12:45,720 --> 01:12:47,000 HEARING YOUTH. 1423 01:12:47,000 --> 01:12:49,920 IT WAS VERY EXCITING TO SEE THIS 1424 01:12:49,920 --> 01:12:51,360 BECAUSE THIS WAS FUNDED BY 1425 01:12:51,360 --> 01:12:51,880 NIDCD. 1426 01:12:51,880 --> 01:12:54,640 SO IT WAS THE FIRST OF ITS KIND. 1427 01:12:54,640 --> 01:12:56,440 IT HAD BEEN HISTORICALLY LIMITED 1428 01:12:56,440 --> 01:12:58,520 TO HEARING SCIENCE AND WHILE 1429 01:12:58,520 --> 01:13:00,640 THERE WERE DEAF AND HARD OF 1430 01:13:00,640 --> 01:13:02,080 HEARING YOUTH INCLUDED IT WAS 1431 01:13:02,080 --> 01:13:04,720 MUCH MORE OF A BROAD INVESTMENT 1432 01:13:04,720 --> 01:13:06,080 RATHER THAN SPECIFICALLY 1433 01:13:06,080 --> 01:13:07,840 CENTERED ON THIS SCIENTIFICALLY 1434 01:13:07,840 --> 01:13:10,880 AND I'M SO APPRECIATIVE OF THIS. 1435 01:13:10,880 --> 01:13:13,440 THERE WHAT ALSO A DIVERSITY 1436 01:13:13,440 --> 01:13:14,760 SUPPLEMENT AND THE EXPERIENCE 1437 01:13:14,760 --> 01:13:18,120 THAT I HAD ALSO HAD A VARIETY OF 1438 01:13:18,120 --> 01:13:18,400 CHALLENGES. 1439 01:13:18,400 --> 01:13:20,000 MY HUSBAND AT THE TIME WAS IN 1440 01:13:20,000 --> 01:13:21,240 HIS SECOND PhD. 1441 01:13:21,240 --> 01:13:23,600 MY KIDS WERE ALSO IN SCHOOL. 1442 01:13:23,600 --> 01:13:32,280 SO IT WAS NOT A -- MOVE FOR US 1443 01:13:32,280 --> 01:13:33,960 TO MOVE AND CONTINUE WITH OUR 1444 01:13:33,960 --> 01:13:37,880 STUDIES AND NIDCD WAS SO KIND TO 1445 01:13:37,880 --> 01:13:40,480 ALLOW FOR REMOTE WORK SO I COULD 1446 01:13:40,480 --> 01:13:42,320 STAY WITH MY FAMILY. 1447 01:13:42,320 --> 01:13:44,880 AND I THEN TRAVELED TO CONNECT 1448 01:13:44,880 --> 01:13:48,360 WITH MY PI AND FELLOWSHIP ON A 1449 01:13:48,360 --> 01:13:50,640 QUARTERLY BASES. 1450 01:13:50,640 --> 01:13:53,400 IN 2010 EARLY CAREER TRAINING 1451 01:13:53,400 --> 01:13:56,760 WHICH WAS NOT COMMON WAS WHERE I 1452 01:13:56,760 --> 01:13:58,200 IDENTIFIED MY CHALLENGES AND 1453 01:13:58,200 --> 01:14:00,080 UNDERSTOOD WHERE I NEEDED TO GET 1454 01:14:00,080 --> 01:14:00,640 THROUGH. 1455 01:14:00,640 --> 01:14:02,840 IN A VARIETY OF WAYS. 1456 01:14:02,840 --> 01:14:06,120 SO, THAT IS WHEN I DID MY SECOND 1457 01:14:06,120 --> 01:14:07,680 POSTDOC AT A DIFFERENT 1458 01:14:07,680 --> 01:14:09,000 UNIVERSITY AND I HAD SUPPORT ON 1459 01:14:09,000 --> 01:14:13,520 MY K GRANTS. 1460 01:14:13,520 --> 01:14:16,920 SO THAT PARTICULAR PROGRAM -- 1461 01:14:16,920 --> 01:14:19,360 SERVED SEVERAL DEAF AND HARD OF 1462 01:14:19,360 --> 01:14:20,760 HEARING POSTDOCTORAL STUDENTS. 1463 01:14:20,760 --> 01:14:23,560 I WAS FORTUNATE TO BE IN AN 1464 01:14:23,560 --> 01:14:25,640 ENVIRONMENT WITH FELLOW DEAF AND 1465 01:14:25,640 --> 01:14:27,200 HARD OF HEARING SCIENTISTS AT 1466 01:14:27,200 --> 01:14:27,800 THE TIME. 1467 01:14:27,800 --> 01:14:30,440 NONE OF THE LEADERS WHO WERE 1468 01:14:30,440 --> 01:14:32,600 PIs IDENTIFIED AS DEAF OR HARD 1469 01:14:32,600 --> 01:14:33,680 OF HEARING. 1470 01:14:33,680 --> 01:14:36,640 IT WAS VERY MUCH GUIDED BY A 1471 01:14:36,640 --> 01:14:37,760 MAJORITY COMMUNITY OF HEARING 1472 01:14:37,760 --> 01:14:39,720 INDIVIDUALS. 1473 01:14:39,720 --> 01:14:42,360 THEY WERE ALSO ALL MALE. 1474 01:14:42,360 --> 01:14:45,080 NO FEMALE PIs AT THE TIME. 1475 01:14:45,080 --> 01:14:46,400 EVERYONE IDENTIFIED AS WHITE. 1476 01:14:46,400 --> 01:14:48,280 NONE OF THEM IDENTIFIED AS 1477 01:14:48,280 --> 01:14:50,480 INDIVIDUALS OF COLOR. 1478 01:14:50,480 --> 01:14:52,560 REGARDLESS I STILL HAD QUITE A 1479 01:14:52,560 --> 01:14:54,560 POSITIVE EXPERIENCE IN MY 1480 01:14:54,560 --> 01:14:55,760 TRAINING AT THAT PARTICULAR 1481 01:14:55,760 --> 01:14:57,560 INSTITUTE AND I DEVELOPED 1482 01:14:57,560 --> 01:14:59,640 SIGNIFICANT GRANT WRITING 1483 01:14:59,640 --> 01:15:01,480 SKILLS, RESEARCH SKILLS ETC. 1484 01:15:01,480 --> 01:15:03,800 HOWEVER AT THAT TIME THE 1485 01:15:03,800 --> 01:15:06,240 UNIVERSITY DID NOT HAVE A STRONG 1486 01:15:06,240 --> 01:15:07,040 INTERPRETER TEAM. 1487 01:15:07,040 --> 01:15:11,320 SO I WAS AT THE MERCY OF 1488 01:15:11,320 --> 01:15:13,480 INTERPRETERS WHO WERE ASSIGNED 1489 01:15:13,480 --> 01:15:15,000 THAT WERE NOT ADEPT IN THE 1490 01:15:15,000 --> 01:15:17,680 TRANSLATION OF INFORMATION FROM 1491 01:15:17,680 --> 01:15:19,120 SPOKEN ENGLISH TO SIGN LANGUAGE 1492 01:15:19,120 --> 01:15:21,200 SO I DID EXPERIENCE SIGNIFICANT 1493 01:15:21,200 --> 01:15:23,520 GAPS AND DELAYS IN RECEIVING 1494 01:15:23,520 --> 01:15:27,000 INFORMATION WHICH IMPACTED MY 1495 01:15:27,000 --> 01:15:27,920 EARLY DOCTORAL AND CAREER 1496 01:15:27,920 --> 01:15:29,120 TRAINING. 1497 01:15:29,120 --> 01:15:34,960 AT THAT TIME WHICH WAS ABOUT 1498 01:15:34,960 --> 01:15:36,600 2010-2012 AGAIN THERE WERE NOT 1499 01:15:36,600 --> 01:15:38,920 MANY DEAF AND HARD OF HEARING 1500 01:15:38,920 --> 01:15:41,160 INDIVIDUALS WHO WERE PIs. 1501 01:15:41,160 --> 01:15:44,880 THERE WERE DEAF AND HARD OF 1502 01:15:44,880 --> 01:15:46,440 HEARING FOLKS THAT WERE STARTING 1503 01:15:46,440 --> 01:15:48,680 THEIR CAREER BUT NOT YET AT THE 1504 01:15:48,680 --> 01:15:50,440 LEVEL OF PRINCIPLE INVESTIGATOR. 1505 01:15:50,440 --> 01:15:53,080 AND INDIVIDUALS WHO WERE PIs 1506 01:15:53,080 --> 01:15:54,520 WERE NOT DOING THE WORK THAT I 1507 01:15:54,520 --> 01:15:56,520 WAS INTERESTED IN SO I 1508 01:15:56,520 --> 01:15:57,680 EXPERIENCED SIGNIFICANT 1509 01:15:57,680 --> 01:16:00,000 DIFFICULTIES IN FINDING 1510 01:16:00,000 --> 01:16:01,440 MENTORSHIPS AND TEAMS DURING 1511 01:16:01,440 --> 01:16:03,400 THAT PARTICULAR TIME AND THAT 1512 01:16:03,400 --> 01:16:04,880 WAS REQUIRED OF THE K 1513 01:16:04,880 --> 01:16:06,520 APPLICATION SO I EXPERIENCE 1514 01:16:06,520 --> 01:16:09,000 EDELMAN EAR BARRIERS BECAUSE OF 1515 01:16:09,000 --> 01:16:10,840 THE LACK OF RESOURCES THAT WERE 1516 01:16:10,840 --> 01:16:12,160 AVAILABLE TO ME. 1517 01:16:12,160 --> 01:16:16,240 FACULTY SHARED WITH ME POORNA 1518 01:16:16,240 --> 01:16:18,040 YOU'RE INTERESTED IN DEAF HEALTH 1519 01:16:18,040 --> 01:16:18,360 DISPARITIES. 1520 01:16:18,360 --> 01:16:20,400 I'M NOT THE BEST PERSON TO 1521 01:16:20,400 --> 01:16:21,360 MENTOR YOU. 1522 01:16:21,360 --> 01:16:23,360 AND THIS WAS A REPEATED MESSAGE 1523 01:16:23,360 --> 01:16:25,120 AND OFTEN TIMES PEOPLE WOULD SAY 1524 01:16:25,120 --> 01:16:27,080 I DON'T KNOW ANY ONE WHO'S DEAF 1525 01:16:27,080 --> 01:16:28,400 OR HARD OF HEARING. 1526 01:16:28,400 --> 01:16:30,320 I DON'T KNOW ENOUGH ABOUT THE 1527 01:16:30,320 --> 01:16:31,640 COMMUNITIES AND THEIR 1528 01:16:31,640 --> 01:16:32,960 EXPERIENCES WITH HEALTH 1529 01:16:32,960 --> 01:16:34,960 DISPARITIES SO WE ARE NOT ABLE 1530 01:16:34,960 --> 01:16:37,120 TO MENTOR YOU SO I MOVED ON AND 1531 01:16:37,120 --> 01:16:38,560 TRIED FOR A NEW GRANT. 1532 01:16:38,560 --> 01:16:39,800 THE SMALLER RESEARCH GRANT AT 1533 01:16:39,800 --> 01:16:44,320 THE TIME AND DURING THE YEARS OF 1534 01:16:44,320 --> 01:16:45,880 2012-2014 THIS PERIOD WAS 1535 01:16:45,880 --> 01:16:48,200 FOCUSED ON BUILDING A NETWORK OF 1536 01:16:48,200 --> 01:16:51,840 DEAF AND HARD OF HEARING 1537 01:16:51,840 --> 01:16:52,120 RESEARCHERS. 1538 01:16:52,120 --> 01:16:53,720 COLLABORATING WITH MENTORS AND 1539 01:16:53,720 --> 01:16:55,720 PARTNERS TO SUPPORT IN THESE 1540 01:16:55,720 --> 01:16:57,360 GRANT APPLICATIONS. 1541 01:16:57,360 --> 01:17:00,560 SO I THEN APPLIED FOR AS I 1542 01:17:00,560 --> 01:17:02,560 MENTIONED SMALLER MEDICAL 1543 01:17:02,560 --> 01:17:07,800 RESEARCH GRANTS RO3s. 1544 01:17:07,800 --> 01:17:10,160 R21EE AD NAUSEAM AND I WAS 1545 01:17:10,160 --> 01:17:12,000 UNABLE TO GET FUNDING. 1546 01:17:12,000 --> 01:17:14,600 I CHOSE TO CREATE A PHENOMENAL 1547 01:17:14,600 --> 01:17:16,600 TEAM THAT I HAVE COLLABORATED 1548 01:17:16,600 --> 01:17:18,240 WITH THUS FAR AND THIS 1549 01:17:18,240 --> 01:17:21,200 INCREDIBLE NETWORK OF PEOPLE. 1550 01:17:21,200 --> 01:17:25,600 AND THESE FOLKS HELPED ME GET 1551 01:17:25,600 --> 01:17:28,440 R15 AND R1 GRANTS IN THE YEAR 1552 01:17:28,440 --> 01:17:30,800 2015 WHICH IS THE NEXT PART OF 1553 01:17:30,800 --> 01:17:32,880 MY HISTORY AND JOURNEY. 1554 01:17:32,880 --> 01:17:37,000 DURING THAT TIME THE 2015 TO 1555 01:17:37,000 --> 01:17:38,680 2021 YEARS THERE WAS A 1556 01:17:38,680 --> 01:17:40,800 SIGNIFICANT COMMITMENT FROM NIH 1557 01:17:40,800 --> 01:17:44,640 TO INCREASE THEIR DIVERSITY 1558 01:17:44,640 --> 01:17:46,520 POPULATION WITHIN SCIENCE AND I 1559 01:17:46,520 --> 01:17:48,120 FELT LIKE I HAD GOTTEN THIS 1560 01:17:48,120 --> 01:17:50,000 MONEY AT THE RIGHT TIME AND IT 1561 01:17:50,000 --> 01:17:52,120 WAS FINALLY AVAILABLE TO SUPPORT 1562 01:17:52,120 --> 01:17:54,240 THOSE HARD TO REACH GROUPS THAT 1563 01:17:54,240 --> 01:17:56,120 I HAD BEEN SPEAKING OF IN 1564 01:17:56,120 --> 01:17:58,680 EARLIER CAREER TIMES. 1565 01:17:58,680 --> 01:18:01,360 I RECEIVED FIVE OF THOSE 1566 01:18:01,360 --> 01:18:03,320 ADMINISTRATIVE SUPPLEMENTS AND 1567 01:18:03,320 --> 01:18:06,160 TWO DIVERSITY SUPPLEMENTS DURING 1568 01:18:06,160 --> 01:18:07,040 THAT TIME. 1569 01:18:07,040 --> 01:18:09,600 AND THOSE WERE TO SUPPORT THE 1570 01:18:09,600 --> 01:18:11,560 HARD TO REACH GROUPS. 1571 01:18:11,560 --> 01:18:14,280 FOR EXAMPLE, SEXUAL AND GENDER 1572 01:18:14,280 --> 01:18:18,080 MINORITIES IN ADDITION TO PEOPLE 1573 01:18:18,080 --> 01:18:20,080 WHO WERE FROM RACIAL AND ETHNIC 1574 01:18:20,080 --> 01:18:22,560 ABOUT BACKGROUNDS WHO WERE 1575 01:18:22,560 --> 01:18:24,840 MINORITIZED AND EXPERIENCED 1576 01:18:24,840 --> 01:18:28,160 DISPARITIES IN HEALTH. 1577 01:18:28,160 --> 01:18:30,160 THE DEAF AND HARD OF HEARING 1578 01:18:30,160 --> 01:18:32,160 INDIVIDUALS THAT I WORKED WITH 1579 01:18:32,160 --> 01:18:33,600 WERE ALSO CARETAKERS OF 1580 01:18:33,600 --> 01:18:34,840 INDIVIDUALS WHO WERE 1581 01:18:34,840 --> 01:18:36,480 EXPERIENCING ALZHEIMER'S AND 1582 01:18:36,480 --> 01:18:38,840 DIMENSION YA AND DURING THAT * 1583 01:18:38,840 --> 01:18:41,480 FIVE TO SIX YEAR PERIOD ALL OF 1584 01:18:41,480 --> 01:18:46,720 THE FUNDING AND ACCEPT -- 1585 01:18:46,720 --> 01:18:50,680 SUPPLEMENTS FOCUSED ON THE TEAMS 1586 01:18:50,680 --> 01:18:56,720 WHO WERE DI DIVERSE -- EVERY ONF 1587 01:18:56,720 --> 01:19:00,600 US WORKED TOGETHER TO RECRUIT 1588 01:19:00,600 --> 01:19:03,440 OVER 2000 DEAF, DEAF BLIND AND 1589 01:19:03,440 --> 01:19:05,560 HARD OF HEARING ADULTS WHO ARE 1590 01:19:05,560 --> 01:19:06,720 SIGN LANGUAGE USERS IN THE 1591 01:19:06,720 --> 01:19:08,680 UNITED STATES. 1592 01:19:08,680 --> 01:19:13,960 AND PUERTO RICO, ALASKA, HAWAII 1593 01:19:13,960 --> 01:19:15,720 AS WELL AS TERRITORIES. 1594 01:19:15,720 --> 01:19:18,720 THIS HAS ALLOWED FOR A PLETHORA 1595 01:19:18,720 --> 01:19:20,800 OF INFORMATION THAT HAS LED TO 1596 01:19:20,800 --> 01:19:24,360 HEALTH OUTCOMES, PATIENT 1597 01:19:24,360 --> 01:19:26,680 OUTCOMES, HEALTH LITERACY AND 1598 01:19:26,680 --> 01:19:28,120 DIVERSITY AND THE RESULT IS FOR 1599 01:19:28,120 --> 01:19:32,040 OUR ABILITY TO CENTER OVER 75 1600 01:19:32,040 --> 01:19:33,200 PAPERS AND PRESENTATIONS THAT 1601 01:19:33,200 --> 01:19:37,040 ARE ABOUT THE LIVED EXPERIENCE' 1602 01:19:37,040 --> 01:19:39,840 DEAF, DEAF BLIND, HARD OF 1603 01:19:39,840 --> 01:19:42,880 HEARING INDIVIDUALS AT A VARIETY 1604 01:19:42,880 --> 01:19:44,680 OF LEVELS. 1605 01:19:44,680 --> 01:19:46,480 MOST RECENTLY MY CENTER RECEIVED 1606 01:19:46,480 --> 01:19:48,560 A COLLABORATIVE AGREEMENT THAT 1607 01:19:48,560 --> 01:19:52,120 FOCUSED ON INCREASING HEALTH 1608 01:19:52,120 --> 01:19:54,560 EQUITY WITHIN DEAF, DEAF BLIND 1609 01:19:54,560 --> 01:19:56,840 AND HARD OF HEARING COMMUNITIES 1610 01:19:56,840 --> 01:19:58,360 RESPECTIVELY AND WE'VE RECEIVED 1611 01:19:58,360 --> 01:20:00,400 TWO SUPPLEMENTS THAT ALLOW FOR 1612 01:20:00,400 --> 01:20:03,600 US TO HIRE BLACK DEAF 1613 01:20:03,600 --> 01:20:05,240 INDIVIDUALS BOTH WHOM ARE 1614 01:20:05,240 --> 01:20:06,640 INTERESTED IN ATTENDING MEDICAL 1615 01:20:06,640 --> 01:20:07,880 SCHOOL. 1616 01:20:07,880 --> 01:20:10,640 THEY WILL BE ATTENDING AND BE 1617 01:20:10,640 --> 01:20:14,960 THE FIRST DEAF BLACK INDIVIDUALS 1618 01:20:14,960 --> 01:20:17,640 TO BECOME MEDICAL PHYSICIANS WHO 1619 01:20:17,640 --> 01:20:20,920 ARE USING SIGN LANGUAGE TO 1620 01:20:20,920 --> 01:20:22,320 COMMUNICATE WITH PATIENTS AND 1621 01:20:22,320 --> 01:20:22,720 PEERS. 1622 01:20:22,720 --> 01:20:24,840 THIS IS BEYOND EXCITING NOT ONLY 1623 01:20:24,840 --> 01:20:26,720 FOR THESE INDIVIDUALS BUT FOR US 1624 01:20:26,720 --> 01:20:29,240 AS A COMMUNITY AND I'M SO 1625 01:20:29,240 --> 01:20:30,800 GRATEFUL TO NIDCD FOR YOUR 1626 01:20:30,800 --> 01:20:40,960 SUPPORT. 1627 01:20:42,560 --> 01:20:44,240 I'D LIKE TO TAKE A FEW MINUTES 1628 01:20:44,240 --> 01:20:45,480 TO SHARE SOME OF THE TRAINING 1629 01:20:45,480 --> 01:20:47,240 AND RESEARCH CHALLENGES THAT 1630 01:20:47,240 --> 01:20:49,600 I'VE EXPERIENCED AND I WILL 1631 01:20:49,600 --> 01:20:52,000 SHARE SOME SUCCESSES. 1632 01:20:52,000 --> 01:20:54,520 THESE INCLUDE DEAF AND HARD OF 1633 01:20:54,520 --> 01:20:56,080 HEARING PEOPLE WITHIN SCIENCE 1634 01:20:56,080 --> 01:20:59,360 BEING A CHALLENGE FOR 1635 01:20:59,360 --> 01:21:01,160 HISTORICALLY UNTIL JUST RECENT. 1636 01:21:01,160 --> 01:21:03,480 I SHARE WHAT MY LIVED EXPERIENCE 1637 01:21:03,480 --> 01:21:05,360 WAS OVER THE PAST 20 YEARS AND 1638 01:21:05,360 --> 01:21:06,840 THE EFFORTS THAT I'VE DONE TO 1639 01:21:06,840 --> 01:21:08,560 INCLUDE DEAF AND HARD OF HEARING 1640 01:21:08,560 --> 01:21:10,880 INDIVIDUALS AND WE'VE CREATED AN 1641 01:21:10,880 --> 01:21:11,880 OBSERVATION LIST THAT I WOULD 1642 01:21:11,880 --> 01:21:13,640 LIKE TO SHARE WITH YOU. 1643 01:21:13,640 --> 01:21:16,400 WE NOTICED THAT NIDCD TRAINING 1644 01:21:16,400 --> 01:21:18,480 GRANTS HAD A SIGNIFICANT 1645 01:21:18,480 --> 01:21:20,800 EMPHASIS ON POSTDOCS AND ON 1646 01:21:20,800 --> 01:21:22,360 EARLY CAREER INDIVIDUAL 1647 01:21:22,360 --> 01:21:26,600 TRAINING. 1648 01:21:26,600 --> 01:21:28,600 SECONDLY THE DIVERSITY 1649 01:21:28,600 --> 01:21:30,600 SUPPLEMENT ALSO HAD AN 'EM FROM 1650 01:21:30,600 --> 01:21:33,760 SIX OR PREFERENCE TO INCLUDE -- 1651 01:21:33,760 --> 01:21:35,920 * UNDERGRADS AND GRAD AND 1652 01:21:35,920 --> 01:21:38,160 POSTDOCS AND ONE OF THE 1653 01:21:38,160 --> 01:21:40,200 CHALLENGES WAS FOR BOTH OF THESE 1654 01:21:40,200 --> 01:21:44,160 SPECIFICS A LOT OF FACULTY LEVEL 1655 01:21:44,160 --> 01:21:46,520 INDIVIDUALS WERE UNEDUCATED IN 1656 01:21:46,520 --> 01:21:50,280 OR DID NOT KNOW ANY FAMILIARITY 1657 01:21:50,280 --> 01:21:51,840 WITH THESE PARTICULAR SUBJECT 1658 01:21:51,840 --> 01:21:52,680 MATTERS. 1659 01:21:52,680 --> 01:21:54,600 SO THERE WERE DEAF AND HARD OF 1660 01:21:54,600 --> 01:21:56,480 HEARING MEMBERS AT FACULTY LEVEL 1661 01:21:56,480 --> 01:21:58,800 WHO DID NOT HAVE OPPORTUNITIES 1662 01:21:58,800 --> 01:22:02,320 TO RECEIVE TRAINING PRIOR TO AND 1663 01:22:02,320 --> 01:22:04,560 THE REASON BEING IS BECAUSE ANY 1664 01:22:04,560 --> 01:22:06,960 INDIVIDUAL WHO COMES FROM A 1665 01:22:06,960 --> 01:22:07,840 MARGINALIZED COMMUNITY INCLUDING 1666 01:22:07,840 --> 01:22:11,760 FOLKS WHO CAN HEAR -- 1667 01:22:11,760 --> 01:22:12,600 MARGINALIZED COMMUNITIES ARE 1668 01:22:12,600 --> 01:22:14,600 OFTEN CALLED TO TEACH OR TO DO 1669 01:22:14,600 --> 01:22:17,240 THINGS IMMEDIATELY AFTER THEIR 1670 01:22:17,240 --> 01:22:18,800 DOCTORATE IS RECEIVED. 1671 01:22:18,800 --> 01:22:21,320 BUT PRIOR TO OR POSTDOC THEY 1672 01:22:21,320 --> 01:22:24,840 DON'T HAVE ACCESS TO THESE 1673 01:22:24,840 --> 01:22:27,640 TRAININGS, ACADEMIC TEACHING AND 1674 01:22:27,640 --> 01:22:29,800 SERVICES THAT ALLOW FOR THEM TO 1675 01:22:29,800 --> 01:22:31,280 ADVANCE IN WAYS THAT WOULD 1676 01:22:31,280 --> 01:22:32,120 CONTRIBUTE. 1677 01:22:32,120 --> 01:22:36,000 OFTEN TIMES THEY ARE RELEASED OF 1678 01:22:36,000 --> 01:22:37,000 TEACHING RESPONSIBILITY AT A 1679 01:22:37,000 --> 01:22:38,760 TIME THAT THEY ARE UNABLE TO 1680 01:22:38,760 --> 01:22:40,600 APPLY FOR THESE FUNDING. 1681 01:22:40,600 --> 01:22:44,160 SO THEY ARE SEEN AS TOO ADVANCED 1682 01:22:44,160 --> 01:22:46,600 FOR THE FUNDING AND THEREFORE 1683 01:22:46,600 --> 01:22:49,440 IT'S A CHALLENGE FOR ME TO GET 1684 01:22:49,440 --> 01:22:51,120 INDIVIDUALS WHO WOULD BE 1685 01:22:51,120 --> 01:22:52,360 APPROPRIATELY MATCHED TO WORK 1686 01:22:52,360 --> 01:22:54,080 WITHIN THE FIELD OF SCIENCE THAT 1687 01:22:54,080 --> 01:22:56,680 YOU ARE DEAF AND HARD OF HEARING 1688 01:22:56,680 --> 01:22:57,880 INDIVIDUALS. 1689 01:22:57,880 --> 01:23:00,080 THERE IS ALSO A MISMATCH BETWEEN 1690 01:23:00,080 --> 01:23:02,400 DEAF AND HARD OF HEARING 1691 01:23:02,400 --> 01:23:04,280 CANDIDATES AND ELBILITY WHEN IT 1692 01:23:04,280 --> 01:23:07,360 COMES TO THE * CURRICULUM 1693 01:23:07,360 --> 01:23:09,480 REQUIREMENTS AND THE LAST POINT 1694 01:23:09,480 --> 01:23:11,680 IS THERE THERE IS A LIMITED 1695 01:23:11,680 --> 01:23:14,200 AMOUNT OF FUNDING SUPPORT AND 1696 01:23:14,200 --> 01:23:16,960 ACCESSIBILITY TO QUALITY, 1697 01:23:16,960 --> 01:23:18,560 ADMINISTRATIVE SUPPLEMENTAL 1698 01:23:18,560 --> 01:23:19,840 SUPPORT. 1699 01:23:19,840 --> 01:23:22,160 AND OFTEN TIMES THE MONIES THAT 1700 01:23:22,160 --> 01:23:24,960 WE RECEIVE ARE USED TO COVER 1701 01:23:24,960 --> 01:23:27,040 INTERPRETING SUPPORT RATHER THAN 1702 01:23:27,040 --> 01:23:29,240 SCIENCE AND ACCESSIBILITY 1703 01:23:29,240 --> 01:23:31,600 SERVICES MUST BE OF THE HIGHEST 1704 01:23:31,600 --> 01:23:33,560 QUALITY IN ORDER FOR US TO HAVE 1705 01:23:33,560 --> 01:23:35,080 ACCESS TO OUR RESEARCH. 1706 01:23:35,080 --> 01:23:38,640 SO THE LIMITED FUNDING THEN 1707 01:23:38,640 --> 01:23:41,120 BECOMES EVEN MORE SUBSTANTIALLY 1708 01:23:41,120 --> 01:23:42,040 LIMITED AND THE BUDGET 1709 01:23:42,040 --> 01:23:43,720 EXPERIENCE IS STRESSED BECAUSE 1710 01:23:43,720 --> 01:23:47,800 OUR FOCUS ENDS UP BEING ON 1711 01:23:47,800 --> 01:23:48,560 ACCESSIBILITY. 1712 01:23:48,560 --> 01:23:50,680 TODAY WE STILL SEE UNDER 1713 01:23:50,680 --> 01:23:52,200 REPRESENTATION OF DEAF AND HARD 1714 01:23:52,200 --> 01:23:55,640 OF HEARING RESEARCHERS WHO HAVE 1715 01:23:55,640 --> 01:23:57,320 INTERSECTIONAL AND INTERSECTING 1716 01:23:57,320 --> 01:23:59,400 IDENTITIES AND THOSE INDIVIDUALS 1717 01:23:59,400 --> 01:24:02,720 IF YOU LOOK ARE ORDINARY TIMES 1718 01:24:02,720 --> 01:24:06,000 IF NOT ALWAYS WHITE, MALE 1719 01:24:06,000 --> 01:24:07,120 PRESENTING INDIVIDUALS WHO 1720 01:24:07,120 --> 01:24:08,560 EXPERIENCE MUCH MORE SUCCESS IN 1721 01:24:08,560 --> 01:24:11,000 THE FIELD OF RESEARCH. 1722 01:24:11,000 --> 01:24:15,520 I'M VERY, VERY HAPPY TO SEE NIH 1723 01:24:15,520 --> 01:24:17,800 AND NIDCD COMMITTED TO 1724 01:24:17,800 --> 01:24:19,040 INTERSECTIONALITY AND DIVERSITY 1725 01:24:19,040 --> 01:24:21,520 WITHIN THE FIELDS OF SCIENCE AND 1726 01:24:21,520 --> 01:24:23,080 LOOK FORWARD TO THAT AMONG THE 1727 01:24:23,080 --> 01:24:26,240 YEARS TO COME. 1728 01:24:26,240 --> 01:24:28,680 THERE IS A LOT OF RESEARCH THAT 1729 01:24:28,680 --> 01:24:30,800 ALSO DOESN'T INCLUDE THE LIVED 1730 01:24:30,800 --> 01:24:34,040 EXPERIENCE OF DEAF COMMUNITIES. 1731 01:24:34,040 --> 01:24:36,400 BUT HAVE INTERSECTING IDENTITIES 1732 01:24:36,400 --> 01:24:38,520 IN THEIR WORK SO THAT NEEDS TO 1733 01:24:38,520 --> 01:24:40,360 INCREASE AS WELL IN ADDITION TO 1734 01:24:40,360 --> 01:24:41,920 GRASSROOTS DEAF AND HARD OF 1735 01:24:41,920 --> 01:24:50,720 HEARING FOLKS. 1736 01:24:50,720 --> 01:24:52,120 HERE I WOULD LIKE TO SHARE SOME 1737 01:24:52,120 --> 01:24:54,160 OF THE SUCCESSES. 1738 01:24:54,160 --> 01:24:57,000 WE HAVE GOTTEN FUNDING OVER THE 1739 01:24:57,000 --> 01:24:58,680 YEARS THAT HAS BEEN SPECIFIC TO 1740 01:24:58,680 --> 01:25:01,320 LANGUAGE, DEAF AND HARD OF 1741 01:25:01,320 --> 01:25:03,080 HEARING PEOPLE OUTCOME IN THEIR 1742 01:25:03,080 --> 01:25:04,520 HEALTH EXPERIENCES AND THOSE 1743 01:25:04,520 --> 01:25:06,440 STUDIES HAD ALLOWED FOR TOWSON 1744 01:25:06,440 --> 01:25:08,760 CREASE DIVERSE DEAF AND HARD OF 1745 01:25:08,760 --> 01:25:10,960 HEARING INDIVIDUALS IN THIS 1746 01:25:10,960 --> 01:25:12,200 RESEARCH. 1747 01:25:12,200 --> 01:25:15,200 BOTH FROM LINGUISTIC MINORITIES 1748 01:25:15,200 --> 01:25:16,960 AND MARGINALIZED COMMUNITIES. 1749 01:25:16,960 --> 01:25:19,480 THIS ALSO ALLOWS TO HELP 1750 01:25:19,480 --> 01:25:21,320 INCREASE DIVERSE PERSPECTIVES 1751 01:25:21,320 --> 01:25:23,120 FOR US AS RESEARCHERS. 1752 01:25:23,120 --> 01:25:26,120 AND ENHANCES THE PERSPECTIVES, 1753 01:25:26,120 --> 01:25:29,640 THE DESIGN AND IMPROVES QUALITY 1754 01:25:29,640 --> 01:25:35,680 OF RESULTS, STANDARDIZES -- THE 1755 01:25:35,680 --> 01:25:37,000 STRENGTHENING OF OUR RESEARCH 1756 01:25:37,000 --> 01:25:39,320 DESIGN AND ALLOWS FOR US TO 1757 01:25:39,320 --> 01:25:49,800 ENHANCE THOSE PERSPECTIVES. 1758 01:25:51,520 --> 01:25:54,480 GIVEN THE CURRENT LACK OF OR 1759 01:25:54,480 --> 01:25:56,640 SHORTAGE OF INVESTIGATORS WITH 1760 01:25:56,640 --> 01:25:58,840 INTERSECTING IDENTITIES I WOULD 1761 01:25:58,840 --> 01:26:00,200 LIKE TO SHARE A FEW 1762 01:26:00,200 --> 01:26:01,440 RECOMMENDATIONS FOR WORKING 1763 01:26:01,440 --> 01:26:03,080 WITHIN THOSE LIMITATIONS. 1764 01:26:03,080 --> 01:26:05,160 RIGHT NOW AND HOW WE CAN TRULY 1765 01:26:05,160 --> 01:26:06,400 SHIFT AND CHANGE THIS. 1766 01:26:06,400 --> 01:26:08,760 I WOULD ENCOURAGE FOR FUNDING TO 1767 01:26:08,760 --> 01:26:12,600 BE AN AD VOTE CAR SEE FOR 1768 01:26:12,600 --> 01:26:14,880 CO-CREATING AND CO-PRODUCING A 1769 01:26:14,880 --> 01:26:16,080 SCIENTIFIC COMMUNITY MODEL. 1770 01:26:16,080 --> 01:26:18,440 WHAT I MEAN BY THAT IS RATHER 1771 01:26:18,440 --> 01:26:22,480 THAN PUTTING THE LABOR ON THE 1772 01:26:22,480 --> 01:26:23,720 DESIGN TEAM INCLUDE COMMUNITIES 1773 01:26:23,720 --> 01:26:25,840 SO THAT WE TRULY PARTNER AND 1774 01:26:25,840 --> 01:26:28,040 HELP DIVERSITY PERSPECTIVES 1775 01:26:28,040 --> 01:26:28,920 AMONG OUR RESEARCH. 1776 01:26:28,920 --> 01:26:31,880 IN ADDITION TO THAT IN DEAF AND 1777 01:26:31,880 --> 01:26:35,520 HARD OF HEARING FIELDS WE OFTEN 1778 01:26:35,520 --> 01:26:37,160 SEE GROWTH IN INDIVIDUALS WHO 1779 01:26:37,160 --> 01:26:39,400 ARE GOING TO GRAD SCHOOL AND 1780 01:26:39,400 --> 01:26:41,080 MEDICAL SCHOOL CURRENTLY WHICH 1781 01:26:41,080 --> 01:26:43,680 IS PHENOMENAL AND I'M ALSO 1782 01:26:43,680 --> 01:26:45,160 NOTICING THAT THERE ARE NOT MANY 1783 01:26:45,160 --> 01:26:46,960 DEAF AND HARD OF HEARING 1784 01:26:46,960 --> 01:26:48,040 INDIVIDUALS WHO ARE INTERESTED 1785 01:26:48,040 --> 01:26:49,840 IN RESEARCH AS MUCH AS THEY ARE 1786 01:26:49,840 --> 01:26:51,040 INTERESTED IN TRAINING. 1787 01:26:51,040 --> 01:26:52,920 7 IT SEEMS AS THOUGH THE 1788 01:26:52,920 --> 01:26:55,920 PRACTICE AND TRAINING IS MUCH 1789 01:26:55,920 --> 01:26:57,280 MORE ATTRACTIVE TO THOSE 1790 01:26:57,280 --> 01:26:58,920 INDIVIDUALS AT THIS MOMENT IN 1791 01:26:58,920 --> 01:26:59,120 TIME. 1792 01:26:59,120 --> 01:27:01,440 AND I WONDER IF IT'S BECAUSE OF 1793 01:27:01,440 --> 01:27:03,480 THE DIFFICULTY TO OBTAIN FUNDING 1794 01:27:03,480 --> 01:27:04,800 FOR THE REASONS THAT I MENTIONED 1795 01:27:04,800 --> 01:27:06,240 PRIOR TO. 1796 01:27:06,240 --> 01:27:09,120 SO I WOULD CONSIDER ALLOWING FOR 1797 01:27:09,120 --> 01:27:11,360 CLINICIANS THAT ARE PRIMARILY 1798 01:27:11,360 --> 01:27:13,680 PRACTITIONERS TO PARTICIPATE AS 1799 01:27:13,680 --> 01:27:16,120 THOSE COLLABORATE OARS SO WE CAN 1800 01:27:16,120 --> 01:27:19,200 GET THOSE PERSPECTIVES WHILE 1801 01:27:19,200 --> 01:27:20,840 THEY ARE PURSUING WHAT THEY 1802 01:27:20,840 --> 01:27:22,160 TRULY DESIRE. 1803 01:27:22,160 --> 01:27:22,680 *. 1804 01:27:22,680 --> 01:27:24,240 OUR EMPLOYMENT AND WORKFORCE 1805 01:27:24,240 --> 01:27:26,560 WITH DEAF AND HARD OF HEARING 1806 01:27:26,560 --> 01:27:29,560 INDIVIDUALS NEEDS TO ENHANCE AND 1807 01:27:29,560 --> 01:27:32,040 ALSO PLEASE CONSIDER SUPPORTING 1808 01:27:32,040 --> 01:27:36,600 JUNIOR AND MID-CAREER FACULTY, 1809 01:27:36,600 --> 01:27:39,160 SENIOR CAREER INDIVIDUALS WHO 1810 01:27:39,160 --> 01:27:43,520 MISSED OUT ON THE EARLY 1811 01:27:43,520 --> 01:27:44,720 OPPORTUNITIES. 1812 01:27:44,720 --> 01:27:46,040 IF YOU WOULD CONSIDER INVESTING 1813 01:27:46,040 --> 01:27:47,960 IN THEM TO ALLOW FOR MORE 1814 01:27:47,960 --> 01:27:57,760 SUCCESSES. 1815 01:27:57,760 --> 01:27:59,520 FOR DEAF AND HARD OF HEARING 1816 01:27:59,520 --> 01:28:01,880 COMMUNITIES WE'RE A VERY SMALL 1817 01:28:01,880 --> 01:28:03,080 COMMUNITY WHICH MANY OF YOU 1818 01:28:03,080 --> 01:28:03,800 ALREADY KNOW. 1819 01:28:03,800 --> 01:28:05,480 THE PEOPLE WHO ARE DOING THE 1820 01:28:05,480 --> 01:28:06,800 RESEARCH ARE EVEN SMALLER. 1821 01:28:06,800 --> 01:28:12,720 IT'S A VERY, VERY WIDE WIDE -- 1822 01:28:12,720 --> 01:28:15,640 NOT JUST UNITED STATES BUT 1823 01:28:15,640 --> 01:28:19,040 INTERNATIONALLY BASED MICROCOSM. 1824 01:28:19,040 --> 01:28:23,000 SO CONSIDER A MENTORING NETWORK 1825 01:28:23,000 --> 01:28:26,280 ON A NATIONAL AND INTERNATIONAL 1826 01:28:26,280 --> 01:28:27,560 LEVEL TO WORK TOGETHER AND 1827 01:28:27,560 --> 01:28:30,480 THEREFORE CREATE MENTORSHIP 1828 01:28:30,480 --> 01:28:32,840 OPPORTUNITIES FOR YOUNGER AND UP 1829 01:28:32,840 --> 01:28:34,160 AND COMING FOLKS. 1830 01:28:34,160 --> 01:28:36,280 AND RELATED TO MY FIRST POINT 1831 01:28:36,280 --> 01:28:39,680 BECAUSE IT IS SO WIDESPREAD 1832 01:28:39,680 --> 01:28:42,040 GEOGRAPHICALLY THAT DEAF 1833 01:28:42,040 --> 01:28:44,920 COMMUNITIES LIVE IT IS DIFFICULT 1834 01:28:44,920 --> 01:28:46,800 FOR INPERSON MENTORSHIP TO 1835 01:28:46,800 --> 01:28:47,680 HAPPEN. 1836 01:28:47,680 --> 01:28:49,680 SO PLEASE CONSIDER MIXED IN 1837 01:28:49,680 --> 01:28:51,680 PERSON AND REMOTE MENTORSHIP 1838 01:28:51,680 --> 01:28:53,800 MODELS ESPECIALLY FOR THOSE IN 1839 01:28:53,800 --> 01:28:54,560 RURAL AREAS. 1840 01:28:54,560 --> 01:28:56,320 AND MY FINAL POINT IS TO 1841 01:28:56,320 --> 01:28:57,640 RECOMMEND ADMINISTRATIVE FUNDING 1842 01:28:57,640 --> 01:29:00,640 TO SUPPORT ACCESSIBILITY NEEDS 1843 01:29:00,640 --> 01:29:04,680 INCLUDING CAPTIONING, 1844 01:29:04,680 --> 01:29:09,760 INTERPRETERS, AND NSF. 1845 01:29:09,760 --> 01:29:15,560 AN FED THAT FOCUSES ON 1846 01:29:15,560 --> 01:29:17,240 ADMINISTRATIVE USE FOR 1847 01:29:17,240 --> 01:29:19,680 ACCESSIBILITY RATHER THAN 1848 01:29:19,680 --> 01:29:21,320 EXPERIENCING OUR BUDGET TO BE 1849 01:29:21,320 --> 01:29:23,240 MINIMIZED BECAUSE OF ACCESS AND 1850 01:29:23,240 --> 01:29:24,480 THAT CONCLUDES MY PRESENTATION 1851 01:29:24,480 --> 01:29:24,680 TODAY. 1852 01:29:24,680 --> 01:29:30,320 THANK YOU. 1853 01:29:30,320 --> 01:29:33,320 >> THANK YOU SO MUCH POORNA. 1854 01:29:33,320 --> 01:29:36,440 THAT WAS VERY, VERY INFORMATIVE 1855 01:29:36,440 --> 01:29:39,000 AND I'M SURE THAT SOME ON 1856 01:29:39,000 --> 01:29:40,280 COUNCIL WILL HAVE QUESTIONS. 1857 01:29:40,280 --> 01:29:41,840 SO WE HAVE A LITTLE BIT OF TIME 1858 01:29:41,840 --> 01:29:42,600 FOR THAT. 1859 01:29:42,600 --> 01:29:45,480 AND I WOULD LOVE TO HAVE ANYONE 1860 01:29:45,480 --> 01:29:47,640 WHO WOULD LIKE TO ASK A QUESTION 1861 01:29:47,640 --> 01:29:50,920 OF EITHER POORNA OR TILAK TO DO 1862 01:29:50,920 --> 01:29:54,440 SO. 1863 01:29:54,440 --> 01:29:57,960 GINGER, DO YOU WANT TO SWITCH TO 1864 01:29:57,960 --> 01:30:00,000 THE ZOOM VIEW? 1865 01:30:00,000 --> 01:30:10,440 SO WE CAN SEE EVERYBODY? 1866 01:30:15,560 --> 01:30:17,560 >> IF ANYONE WANTS TO COME IN 1867 01:30:17,560 --> 01:30:20,000 AND ASK A QUESTION PLEASE SPEAK 1868 01:30:20,000 --> 01:30:21,520 UP BECAUSE I CANNOT SEE YOU IN 1869 01:30:21,520 --> 01:30:25,160 THIS VIEW. 1870 01:30:25,160 --> 01:30:28,160 MAYBE I'LL START -- BY ASKING A 1871 01:30:28,160 --> 01:30:29,120 QUESTION. 1872 01:30:29,120 --> 01:30:31,360 POORNA, I KNOW THAT YOU'RE THE 1873 01:30:31,360 --> 01:30:33,880 CHIEF RESEARCH OFFICER FOR 1874 01:30:33,880 --> 01:30:36,960 GALLAUDET AND I'M WONDERING WHAT 1875 01:30:36,960 --> 01:30:38,200 KINDS OF PROGRAMS YOU'RE WORKING 1876 01:30:38,200 --> 01:30:40,920 ON THERE TO INCREASE THE 1877 01:30:40,920 --> 01:30:44,360 RESEARCH CAPABILITIES OF FACULTY 1878 01:30:44,360 --> 01:30:49,880 AT GALLAUDET? 1879 01:30:49,880 --> 01:30:52,080 >> AT GALLAUDET WE'RE CURRENTLY 1880 01:30:52,080 --> 01:30:54,440 WORKING ON PROVIDING MORE GRANT 1881 01:30:54,440 --> 01:30:56,920 WRITING SUPPORT TO OUR FACULTY. 1882 01:30:56,920 --> 01:31:03,200 WE RECENTLY STARTED A RESEARCH 1883 01:31:03,200 --> 01:31:04,760 FUNDAMENTALS SERIES WORKSHOP. 1884 01:31:04,760 --> 01:31:08,040 TO INCREASE TRAINING UNDERGRADS 1885 01:31:08,040 --> 01:31:09,160 STUDENTS, GRADUATE STUDENTS WHO 1886 01:31:09,160 --> 01:31:10,600 ARE ALREADY WORKING IN LAB 1887 01:31:10,600 --> 01:31:11,400 ENVIRONMENTS. 1888 01:31:11,400 --> 01:31:12,960 WE ALSO GOT CONSIDERATION FROM 1889 01:31:12,960 --> 01:31:16,040 THE FACULTY AT GALLAUDET -- 1890 01:31:16,040 --> 01:31:19,680 BECAUSE A LOT OF FACULTY HAVE 1891 01:31:19,680 --> 01:31:23,280 GRANTS A VARIETY OF THEM AND NIH 1892 01:31:23,280 --> 01:31:25,280 -- THERE IS A LOT OF FUNDING 1893 01:31:25,280 --> 01:31:27,720 WHICH IS WONDERFUL BUT THEY ARE 1894 01:31:27,720 --> 01:31:29,160 EXPERIENCING DIFFICULTY IN 1895 01:31:29,160 --> 01:31:30,200 HIRING QUALIFIED RESEARCHERS 1896 01:31:30,200 --> 01:31:32,040 STAFF. 1897 01:31:32,040 --> 01:31:34,680 AND WE'RE SEEING THAT DEAF AND 1898 01:31:34,680 --> 01:31:37,080 HARD OF HEARING PEOPLE IN THE 1899 01:31:37,080 --> 01:31:37,720 POLLED DON'T HAVE THE RESEARCH 1900 01:31:37,720 --> 01:31:39,680 SKILLS THAT THEY NEED ALONG WITH 1901 01:31:39,680 --> 01:31:41,880 THE EXPERIENCE THAT IS REQUIRED. 1902 01:31:41,880 --> 01:31:45,720 SO TO BE QUALIFIED FOR A JOB -- 1903 01:31:45,720 --> 01:31:48,080 * ALONG WITH RESEARCH STAFF IS 1904 01:31:48,080 --> 01:31:49,640 THE FEEDBACK THAT WE'VE RECEIVED 1905 01:31:49,640 --> 01:31:51,280 FROM THE GALLAUDET FACULTY 1906 01:31:51,280 --> 01:31:53,520 COMMUNITY TO ENHANCE TRAINING 1907 01:31:53,520 --> 01:31:57,080 FOR STUDENTS SO THAT THEY BECOME 1908 01:31:57,080 --> 01:31:59,480 QUALIFIED AS RESEARCH WORKERS 1909 01:31:59,480 --> 01:32:00,680 ONCE THEY GRADUATE. 1910 01:32:00,680 --> 01:32:02,480 THEN THEY ARE ALLOWED TO WORK IN 1911 01:32:02,480 --> 01:32:04,800 THE LABS AND GET SUPPORT TO THE 1912 01:32:04,800 --> 01:32:05,240 PI. 1913 01:32:05,240 --> 01:32:07,680 SO, THAT IS WHAT WE'RE FOCUSING 1914 01:32:07,680 --> 01:32:09,280 ON RIGHT NOW. 1915 01:32:09,280 --> 01:32:14,800 WE'RE ALSO PLANNING TO ALLOW FOR 1916 01:32:14,800 --> 01:32:21,040 A RESEARCH SUMMIT THAT PRESIDENT 1917 01:32:21,040 --> 01:32:22,680 CORDANO INCLUDED TO PROVIDE 1918 01:32:22,680 --> 01:32:26,000 FUNDING TO SUPPORT THAT FOR NEXT 1919 01:32:26,000 --> 01:32:28,080 YEAR TO SPECIFICALLY BRING IN 1920 01:32:28,080 --> 01:32:30,520 DEAF, HARD OF HEARING SIGNING 1921 01:32:30,520 --> 01:32:32,440 RESEARCHERS TO THE UNIVERSITY 1922 01:32:32,440 --> 01:32:34,320 SETTING TO TALK ABOUT WHAT THE 1923 01:32:34,320 --> 01:32:36,440 REAL ISSUES ARE, WHAT THE 1924 01:32:36,440 --> 01:32:37,840 CHALLENGES ARE IN THE FIELD AND 1925 01:32:37,840 --> 01:32:39,960 WHAT EVERYONE IS DOING TO 1926 01:32:39,960 --> 01:32:42,360 ADDRESS THOSE GAPS THAT ARE 1927 01:32:42,360 --> 01:32:44,160 IMPACTING THE LIVES OF DEAF AND 1928 01:32:44,160 --> 01:32:46,400 HARD OF HEARING INDIVIDUALS. 1929 01:32:46,400 --> 01:32:50,040 THE GOAL OF THAT SUMMIT IS THAT 1930 01:32:50,040 --> 01:32:52,160 WE EXPECT TO DEFINITELY A VERY 1931 01:32:52,160 --> 01:32:55,600 STRONG NETWORK OF COLLABORATORS 1932 01:32:55,600 --> 01:32:57,600 WHO WILL THEN BECOME MENTORS TO 1933 01:32:57,600 --> 01:32:59,440 OUR STUDENTS AT THE UNIVERSITY. 1934 01:32:59,440 --> 01:33:01,200 SO WE'RE GOING TO BE SENDING 1935 01:33:01,200 --> 01:33:03,880 THEM OUT TO THE LABS FROM THAT 1936 01:33:03,880 --> 01:33:04,400 SUMMIT. 1937 01:33:04,400 --> 01:33:05,960 SO THOSE ARE JUST A FEW THINGS 1938 01:33:05,960 --> 01:33:08,360 THAT WE'RE DOING AT GALLAUDET 1939 01:33:08,360 --> 01:33:09,520 CURRENTLY 1940 01:33:09,520 --> 01:33:11,160 >> THAT SOUNDS FANTASTIC. 1941 01:33:11,160 --> 01:33:12,640 CONGRATULATIONS ON ALL OF YOUR 1942 01:33:12,640 --> 01:33:13,120 WORK. 1943 01:33:13,120 --> 01:33:14,160 THAT IS WONDERFUL. 1944 01:33:14,160 --> 01:33:19,320 I THINK LAUREL CARNEY HAS A 1945 01:33:19,320 --> 01:33:19,800 QUESTION. 1946 01:33:19,800 --> 01:33:21,800 >> HI. 1947 01:33:21,800 --> 01:33:24,800 CAN YOU POINT OUR COMMUNITY TO 1948 01:33:24,800 --> 01:33:27,960 RESOURCES GUIDANCE -- RELATED TO 1949 01:33:27,960 --> 01:33:30,640 PROVIDING SUPPORT FOR PhD 1950 01:33:30,640 --> 01:33:33,280 STUDENTS IN BIOMEDICAL SCIENCES? 1951 01:33:33,280 --> 01:33:35,520 I WONDER IF THERE ARE ANY 1952 01:33:35,520 --> 01:33:39,360 DOCUMENTS OR JUST GENERAL TIPS 1953 01:33:39,360 --> 01:33:41,120 YOU CAN PROVIDE THAT COULD BE 1954 01:33:41,120 --> 01:33:44,360 PUBLISHED ON THE WEBSITES FOR 1955 01:33:44,360 --> 01:33:46,960 EXAMPLE THAT ARE BEING DEVELOPED 1956 01:33:46,960 --> 01:33:50,920 BY -- AS PART OF THE DEI 1957 01:33:50,920 --> 01:33:52,480 EFFORTS. 1958 01:33:52,480 --> 01:33:54,640 THESE WOULD BE VERY USEFUL TO 1959 01:33:54,640 --> 01:33:56,320 PROGRAMS WHO NEED TO TAP INTO 1960 01:33:56,320 --> 01:33:57,800 THOSE RESOURCES FOR THE FIRST 1961 01:33:57,800 --> 01:33:59,080 TIME. 1962 01:33:59,080 --> 01:34:07,760 WITH A NEW STUDENT FOR EXAMPLE. 1963 01:34:07,760 --> 01:34:13,800 >> CAN I START? 1964 01:34:13,800 --> 01:34:16,320 THE FIRST THING -- AS MANY OF 1965 01:34:16,320 --> 01:34:21,080 YOU KNOW THE UNIVERSITY OF -- 1966 01:34:21,080 --> 01:34:26,800 THE PROGRAM -- THEY HAVE THE 1967 01:34:26,800 --> 01:34:27,640 WEBSITE. 1968 01:34:27,640 --> 01:34:32,600 WHAT DO YOU CALL IT? 1969 01:34:32,600 --> 01:34:35,440 -- 1970 01:34:35,440 --> 01:34:37,800 >> HOW COULD I PI MENTOR 1971 01:34:37,800 --> 01:34:39,040 SOMEBODY IN THE LAB? 1972 01:34:39,040 --> 01:34:41,160 AND I'M NOT TALKING ABOUT 1973 01:34:41,160 --> 01:34:41,800 RECRUITMENT. 1974 01:34:41,800 --> 01:34:46,920 BUT HOW PEOPLE CAN PROVIDE -- -- 1975 01:34:46,920 --> 01:34:57,480 I HAVE NOT GOT ANY INFORMATION. 1976 01:35:01,040 --> 01:35:02,800 >> INFORMATION -- I AGREE BUT 1977 01:35:02,800 --> 01:35:06,600 THE PROBLEM -- THAT TECHNOLOGY 1978 01:35:06,600 --> 01:35:14,240 -- IT'S HARD TO KEEP UPDATING. 1979 01:35:14,240 --> 01:35:19,440 >> THANKS. 1980 01:35:19,440 --> 01:35:20,080 >> POORNA, DO YOU EVER A 1981 01:35:20,080 --> 01:35:22,800 COMMENT? 1982 01:35:22,800 --> 01:35:24,920 >> I WOULD LIKE TO ADD TO THAT 1983 01:35:24,920 --> 01:35:25,840 YES. 1984 01:35:25,840 --> 01:35:26,920 THE AMERICAN MEDICAL 1985 01:35:26,920 --> 01:35:32,360 PROFESSIONALS WITH HEARING LOSS 1986 01:35:32,360 --> 01:35:35,640 AMFL THEY HAVE A REALLY NICE * 1987 01:35:35,640 --> 01:35:39,400 SORT OF RESOURCE LIST IF YOU 1988 01:35:39,400 --> 01:35:40,640 WILL FOR FOLKS WHO ARE 1989 01:35:40,640 --> 01:35:41,960 INTERESTED IN GOING INTO THE 1990 01:35:41,960 --> 01:35:43,360 HEALTH CARE PROFESSION. 1991 01:35:43,360 --> 01:35:45,400 THEY HAVE A NETWORKING PROGRAM 1992 01:35:45,400 --> 01:35:47,080 WHERE YOU CAN SIGN UP AND THEY 1993 01:35:47,080 --> 01:35:49,680 WILL MATCH YOU WITH A MENTOR. 1994 01:35:49,680 --> 01:35:52,560 WHO HAS A SIMILAR HEARING LOSS, 1995 01:35:52,560 --> 01:35:53,480 SIMILAR INTEREST AND I REALIZE 1996 01:35:53,480 --> 01:35:58,200 THAT NIDCD CREATED SOMETHING 1997 01:35:58,200 --> 01:35:59,160 SEVERAL YEARS BACK. 1998 01:35:59,160 --> 01:36:01,520 AND I DON'T KNOW WHAT BECAME OF 1999 01:36:01,520 --> 01:36:02,040 THAT. 2000 01:36:02,040 --> 01:36:03,960 I DO KNOW THAT THERE WAS A 2001 01:36:03,960 --> 01:36:06,840 DATABASE THAT WAS DEVELOPED AND 2002 01:36:06,840 --> 01:36:08,720 I'M NOT SEEING THAT BEING 2003 01:36:08,720 --> 01:36:09,440 AMPLIFIED. 2004 01:36:09,440 --> 01:36:11,600 SO IT WOULD BE NICE TO BRING 2005 01:36:11,600 --> 01:36:14,000 THAT BACK AS A RESOURCE SO THAT 2006 01:36:14,000 --> 01:36:16,640 WE CAN GARNER MATCHES FOR PEERS 2007 01:36:16,640 --> 01:36:20,640 WHO ARE SCIENTISTS IDENTIFIED AS 2008 01:36:20,640 --> 01:36:23,400 AN INDIVIDUAL WITH HEARING LOSS 2009 01:36:23,400 --> 01:36:26,360 WITH RESEARCHERS. 2010 01:36:26,360 --> 01:36:27,600 >> THANK YOU. 2011 01:36:27,600 --> 01:36:31,960 NEXT WE HAVE A QUESTION FROM 2012 01:36:31,960 --> 01:36:32,800 RICHARD. 2013 01:36:32,800 --> 01:36:33,320 >> HI. 2014 01:36:33,320 --> 01:36:36,560 THANK YOU BOTH FOR SUCH AN 2015 01:36:36,560 --> 01:36:40,960 EXCELLENT AND INTERESTING TALKS. 2016 01:36:40,960 --> 01:36:42,280 TILAK, I HAVE A QUESTION FOR 2017 01:36:42,280 --> 01:36:44,080 YOU. 2018 01:36:44,080 --> 01:36:50,240 YOU DISCUSSED THE ISSUES AND 2019 01:36:50,240 --> 01:36:51,840 CHALLENGES OF PEOPLE LEARNING ON 2020 01:36:51,840 --> 01:36:55,040 THE LAYER COME GEE AND OTHER -- 2021 01:36:55,040 --> 01:36:57,680 * MEDICAL PROFESSIONS AND IF 2022 01:36:57,680 --> 01:37:00,520 THEY HAVE HEARING LOSS. 2023 01:37:00,520 --> 01:37:02,760 ARE THERE ANY RESOURCE THAT'S 2024 01:37:02,760 --> 01:37:05,520 YOU MIGHT HAVE AVAILABLE FOR 2025 01:37:05,520 --> 01:37:08,320 TECHNOLOGIC KELSO LOSINGS TO 2026 01:37:08,320 --> 01:37:11,960 MAKE * OPERATING ROOMS MORE 2027 01:37:11,960 --> 01:37:13,880 ACCESSIBLE AND GRAND ROUNDS. 2028 01:37:13,880 --> 01:37:15,560 I'M CURIOUS AS TO WHAT HAS BEEN 2029 01:37:15,560 --> 01:37:17,800 DONE TO TRY TO MAKE THESE 2030 01:37:17,800 --> 01:37:20,640 ENVIRONMENTS ACCESSIBLE FOR 2031 01:37:20,640 --> 01:37:23,160 PHYSICIANS WITH HEARING LOSS. 2032 01:37:23,160 --> 01:37:26,520 >> A VERY GOOD QUESTION. 2033 01:37:26,520 --> 01:37:34,640 ACTUALLY IN 2010 MY COLLEAGUE -- 2034 01:37:34,640 --> 01:37:36,680 WE HAD A MEDICAL STUDENT WITH 2035 01:37:36,680 --> 01:37:39,840 HEARING LOSS -- AND WE DECIDED 2036 01:37:39,840 --> 01:37:45,360 HE WANTED TO TRY -- -- AT THAT 2037 01:37:45,360 --> 01:37:55,120 TIME -- -- HE WOULD PROJECT IT 2038 01:37:55,120 --> 01:38:00,680 TO A LAPTOP COMPUTER. 2039 01:38:00,680 --> 01:38:08,160 AND AND ---I CAN NEVER PRONOUNCE 2040 01:38:08,160 --> 01:38:15,040 THAT WORD. 2041 01:38:15,040 --> 01:38:25,560 -- -- WE HAVE -- -- BLUE TOOTH 2042 01:38:30,360 --> 01:38:38,640 MICROPHONE. 2043 01:38:38,640 --> 01:38:40,640 AND IF YOU DO TWO THINGS. 2044 01:38:40,640 --> 01:38:46,120 CLEAR SPEECH AND ALSO -- -- 2045 01:38:46,120 --> 01:38:48,000 MICROPHONE AND HAVE CAPTIONING 2046 01:38:48,000 --> 01:38:56,400 IN THE OR. 2047 01:38:56,400 --> 01:38:59,520 ACTUALLY WHAT I'M PROPOSING NOW 2048 01:38:59,520 --> 01:39:04,480 -- IN A WET LAB -- AN ANIMAL 2049 01:39:04,480 --> 01:39:06,800 SURGICAL LAB AND SEE IF IT WORKS 2050 01:39:06,800 --> 01:39:08,040 IN PRINCIPLE AND THEN THINK 2051 01:39:08,040 --> 01:39:15,720 ABOUT HOW TO DEPLOY THAT . 2052 01:39:15,720 --> 01:39:16,160 OKAY. 2053 01:39:16,160 --> 01:39:17,680 THANK YOU. 2054 01:39:17,680 --> 01:39:20,080 >> AND TILAK, I WAS WONDERING 2055 01:39:20,080 --> 01:39:21,960 MAYBE I CAN WRITE YOU AND GET 2056 01:39:21,960 --> 01:39:26,560 THE REFERENCE FOR THAT ARTICLE? 2057 01:39:26,560 --> 01:39:28,960 >> OKAY. 2058 01:39:28,960 --> 01:39:31,240 >> GOOD. 2059 01:39:31,240 --> 01:39:35,080 ALBERTO HAS A COMMENT. 2060 01:39:35,080 --> 01:39:38,720 >> -- I WANT TO COMMENT THE 2061 01:39:38,720 --> 01:39:40,160 DIVERSITY SUPPLEMENT PROGRAM DO 2062 01:39:40,160 --> 01:39:41,840 SUPPORT ALL OF THE WAY TO THE 2063 01:39:41,840 --> 01:39:43,280 FACULTY LEVEL. 2064 01:39:43,280 --> 01:39:45,080 THE HEART OF THE PROGRAM IS THE 2065 01:39:45,080 --> 01:39:48,320 NEED FOR -- TRAINING BUT WE 2066 01:39:48,320 --> 01:39:49,640 SUPPORT FACULTY. 2067 01:39:49,640 --> 01:39:53,280 AND ALSO WE PROVIDE -- ENHANCING 2068 01:39:53,280 --> 01:39:55,000 THE COMMUNICATION IN THE LAB AND 2069 01:39:55,000 --> 01:39:57,240 FOR THE CANDIDATE TO BE ABLE TO 2070 01:39:57,240 --> 01:39:59,360 COMMUNICATE WITH THE PIs. 2071 01:39:59,360 --> 01:40:00,800 THAT'S AN OPPORTUNITY THAT IS 2072 01:40:00,800 --> 01:40:02,080 THERE. 2073 01:40:02,080 --> 01:40:03,360 THANK YOU. 2074 01:40:03,360 --> 01:40:03,640 >> GREAT. 2075 01:40:03,640 --> 01:40:06,240 THANK YOU, ALBERTO. 2076 01:40:06,240 --> 01:40:08,160 I WONDER AS A LAST QUESTION 2077 01:40:08,160 --> 01:40:10,240 BECAUSE I DON'T SEE ANYBODY ELSE 2078 01:40:10,240 --> 01:40:12,760 WITH THEIR HAND RAISED IF THE 2079 01:40:12,760 --> 01:40:14,640 VIRTUAL ENVIRONMENT IS ANY 2080 01:40:14,640 --> 01:40:17,280 EASIER IN TERMS OF GRAND ROUNDS 2081 01:40:17,280 --> 01:40:27,200 THAT RICHARD WAS MENTIONING. 2082 01:40:27,200 --> 01:40:28,040 >> YES. 2083 01:40:28,040 --> 01:40:29,800 >> IS THE VIRTUAL ENVIRONMENT 2084 01:40:29,800 --> 01:40:33,000 SUCH AS THIS -- IS THIS EASIER 2085 01:40:33,000 --> 01:40:40,160 OR MORE DIFFICULT? 2086 01:40:40,160 --> 01:40:44,520 >> THE TECHNOLOGY -- -- IF YOU 2087 01:40:44,520 --> 01:40:46,960 TOLD ME WE WOULD HAVE AUTOMATIC 2088 01:40:46,960 --> 01:40:50,840 CAPTIONING -- THE TECHNOLOGY HAD 2089 01:40:50,840 --> 01:40:55,320 IMPROVED. 2090 01:40:55,320 --> 01:41:00,400 BECAUSE OF THAT ALONE AND ALSO 2091 01:41:00,400 --> 01:41:02,960 BECAUSE OF DEEP LEARNING AND 2092 01:41:02,960 --> 01:41:05,480 MACHINE LEARNING. 2093 01:41:05,480 --> 01:41:08,160 BUT COMPARED AUTOMATIC 2094 01:41:08,160 --> 01:41:10,200 CAPTIONING WITH HUMAN 2095 01:41:10,200 --> 01:41:10,520 CAPTIONING. 2096 01:41:10,520 --> 01:41:13,560 HUMAN CAPTIONING IS MUCH QUICKER 2097 01:41:13,560 --> 01:41:18,640 AND POTENTIALLY MORE ACCURATE. 2098 01:41:18,640 --> 01:41:26,280 -- HYBRID CAPTIONING -- WE NOW 2099 01:41:26,280 --> 01:41:28,560 HAVE -- TO ACCOMMODATE THAT. 2100 01:41:28,560 --> 01:41:31,640 THE VIRTUAL -- CAPTIONING I 2101 01:41:31,640 --> 01:41:34,440 THINK IS GOING TO BE THE NORM IN 2102 01:41:34,440 --> 01:41:41,840 THE NEXT TWO TO THREE YEARS. 2103 01:41:41,840 --> 01:41:44,000 I'M A NERD ANY WAY. 2104 01:41:44,000 --> 01:41:46,360 >> JOIN THE CLUB. 2105 01:41:46,360 --> 01:41:48,440 >> IF I MAY BEFORE YOU ASK A 2106 01:41:48,440 --> 01:41:53,080 QUESTION -- THANKS SO MUCH. 2107 01:41:53,080 --> 01:41:56,280 I JUST WANTED TO ADD TO 2108 01:41:56,280 --> 01:41:58,480 DR. RATNANATHE'S COMMENT ABOUT 2109 01:41:58,480 --> 01:42:00,840 OFFERING PERSPECTIVES FOR PEOPLE 2110 01:42:00,840 --> 01:42:03,360 WHO HAVE SENSORY DISABILITIES AS 2111 01:42:03,360 --> 01:42:04,200 WELL. 2112 01:42:04,200 --> 01:42:06,880 WHEN YOU LOOK AT A ZOOM PLATFORM 2113 01:42:06,880 --> 01:42:09,760 IT'S VERY HEAVILY AUDIO BASED. 2114 01:42:09,760 --> 01:42:12,360 IF YOU MAY NOT REALIZE -- IF A 2115 01:42:12,360 --> 01:42:14,960 PERSON RAISES THEIR HAND MY 2116 01:42:14,960 --> 01:42:16,480 SCREEN AUTOMATICALLY SHIFTS AND 2117 01:42:16,480 --> 01:42:19,600 I LOSE ACCESS TO THE 2118 01:42:19,600 --> 01:42:20,280 INTERPRETER. 2119 01:42:20,280 --> 01:42:22,640 SO UNLESS I'M GIVEN SPECIFIC 2120 01:42:22,640 --> 01:42:25,280 PRIVILEGES ON MY END I'M 2121 01:42:25,280 --> 01:42:27,080 AUTOMATICALLY MARGINALIZED AS A 2122 01:42:27,080 --> 01:42:28,920 USER OF SIGN LANGUAGE. 2123 01:42:28,920 --> 01:42:30,680 THE RECORDINGS OFTEN TIMES WILL 2124 01:42:30,680 --> 01:42:32,600 SHOW THE SPEAKER VIEW AND WILL 2125 01:42:32,600 --> 01:42:34,360 NOT SHOW THE INTERPRETER WHICH 2126 01:42:34,360 --> 01:42:36,640 IS WHY WE ALWAYS ASK FOR 2127 01:42:36,640 --> 01:42:38,200 SPOTLIGHTING WHICH IS WHY WE 2128 01:42:38,200 --> 01:42:40,320 ALWAYS ASK FOR PARTICULAR NEEDS 2129 01:42:40,320 --> 01:42:41,440 WHICH OFTEN TIMES PEOPLE DON'T 2130 01:42:41,440 --> 01:42:42,320 KNOW. 2131 01:42:42,320 --> 01:42:45,480 IF THE CAPTIONS ARE NOT RECORDED 2132 01:42:45,480 --> 01:42:47,520 THEN WE HAVE TO TURN ON ANOTHER 2133 01:42:47,520 --> 01:42:50,640 CAPTIONING PLATFORM ON OUR END 2134 01:42:50,640 --> 01:42:52,960 WHICH IS OFTEN TIMES YouTube 2135 01:42:52,960 --> 01:42:55,040 AUTO CAPTIONS AND THOSE ARE NOT 2136 01:42:55,040 --> 01:42:56,720 RELIABLE AT ALL. 2137 01:42:56,720 --> 01:42:58,800 SO IN ORDER TO BE FULLY 2138 01:42:58,800 --> 01:43:00,240 ACCESSIBLE FOR FOLKS WHO HAVE 2139 01:43:00,240 --> 01:43:03,280 CENSOR VERY DISABILITIES A LOT 2140 01:43:03,280 --> 01:43:06,080 MORE CONSIDERATION HAS TO OCCUR. 2141 01:43:06,080 --> 01:43:09,080 >> THANK YOU VERY MUCH FOR THOSE 2142 01:43:09,080 --> 01:43:11,520 COMMENTS. 2143 01:43:11,520 --> 01:43:13,880 >> THANK YOU SO MUCH FOR THESE 2144 01:43:13,880 --> 01:43:19,040 VERIFY IN SIRI -- INSPIRING AND 2145 01:43:19,040 --> 01:43:20,800 FASCINATING TALKS. 2146 01:43:20,800 --> 01:43:29,440 AND I WONDER -- *. 2147 01:43:29,440 --> 01:43:33,440 DO YOUR INSTITUTIONS PARTNER 2148 01:43:33,440 --> 01:43:34,880 WITH OTHER UNIVERSITIES AND 2149 01:43:34,880 --> 01:43:38,480 INSTITUTIONS SUCH THAT THERE 2150 01:43:38,480 --> 01:43:42,920 WOULD BE MORE DECENTRALIZED -- 2151 01:43:42,920 --> 01:43:44,160 OF RESEARCH TRAINING FOR 2152 01:43:44,160 --> 01:43:44,840 RESEARCH STAFF? 2153 01:43:44,840 --> 01:43:49,800 THE PARTICULAR PROBLEM THAT -- 2154 01:43:49,800 --> 01:43:52,960 POORNA MENTIONED ACTUALLY SEEMS 2155 01:43:52,960 --> 01:43:56,880 ALMOST INEVITABLE UNLESS WE -- 2156 01:43:56,880 --> 01:44:00,720 ACTUALLY TRAIN -- I'VE 2157 01:44:00,720 --> 01:44:02,520 ENCOUNTERED DEAF AND HARD OF 2158 01:44:02,520 --> 01:44:04,600 HEARING STUDENTS. 2159 01:44:04,600 --> 01:44:08,160 AND GRADUATE STUDENTS. 2160 01:44:08,160 --> 01:44:10,800 AND I KNOW IT'S VERY HARD FOR 2161 01:44:10,800 --> 01:44:12,480 THEM TO STAY IN RESEARCH IN THE 2162 01:44:12,480 --> 01:44:14,920 LAB PARTICULARLY. 2163 01:44:14,920 --> 01:44:16,880 BECAUSE OF ALL OF OF THE OBVIOUS 2164 01:44:16,880 --> 01:44:17,520 PROBLEMS. 2165 01:44:17,520 --> 01:44:19,600 SO PERHAPSHI 2166 01:44:19,600 --> 01:44:21,480 TRAINING BY PARTNERING WITH 2167 01:44:21,480 --> 01:44:23,680 INSTITUTIONS AROUND THE COUNTRY. 2168 01:44:23,680 --> 01:44:25,480 PERHAPS JUST HALF A DOZEN TO 2169 01:44:25,480 --> 01:44:26,680 START WITH. 2170 01:44:26,680 --> 01:44:29,080 TO HELP THEM DEVELOP THE TOOLS 2171 01:44:29,080 --> 01:44:33,600 FOR -- REACHING AND SUPPORTING 2172 01:44:33,600 --> 01:44:40,320 AND TRAINING THOSE STUDENTS. 2173 01:44:40,320 --> 01:44:45,360 >> CAN I GO FIRST. 2174 01:44:45,360 --> 01:44:46,880 >> DECENTRALIZE -- -- 2175 01:44:46,880 --> 01:44:48,520 PARTICULARLY THE PANDEMIC -- 2176 01:44:48,520 --> 01:44:51,200 WITH THE GRADUATE STUDENT IN MY 2177 01:44:51,200 --> 01:44:54,760 DEPARTMENT WHO DROVE -- WHEN I 2178 01:44:54,760 --> 01:44:57,360 TOLD HIM DO YOU USE AUTOMATIC 2179 01:44:57,360 --> 01:45:00,360 CAPTIONS -- THE GRADUATE STUDENT 2180 01:45:00,360 --> 01:45:03,800 -- WE HAVE 450 GRADUATE STUDENTS 2181 01:45:03,800 --> 01:45:08,960 -- THEY -- AUTOMATIC CAPTIONS -- 2182 01:45:08,960 --> 01:45:10,720 AND SO FORTH. 2183 01:45:10,720 --> 01:45:12,800 AND I TRY TO PROMOTE THAT 2184 01:45:12,800 --> 01:45:14,840 DOWNTOWN AND ACROSS THE CAMPUS 2185 01:45:14,840 --> 01:45:23,640 THAT THAT IS HOW YOU DO IT. 2186 01:45:23,640 --> 01:45:25,480 10 OF THOSE GRADUATE STUDENTS 2187 01:45:25,480 --> 01:45:30,800 DID NOT HAVE HEARING LOSS. 2188 01:45:30,800 --> 01:45:39,760 THEY HAD OTHER NEURODIVERSE -- 2189 01:45:39,760 --> 01:45:43,440 >> POORNA. 2190 01:45:43,440 --> 01:45:46,200 >> WHAT YOU'VE ACTUALLY PROPOSED 2191 01:45:46,200 --> 01:45:47,960 GIVE ME SOME FOOD FOR THOUGHT 2192 01:45:47,960 --> 01:45:51,080 AND I WOULD LIKE TO SHARE THIS. 2193 01:45:51,080 --> 01:45:54,240 PARTNERSHIPS AND COLLABORATION 2194 01:45:54,240 --> 01:45:55,920 COULD WORK WELL IF YOU ALLOW FOR 2195 01:45:55,920 --> 01:45:57,120 INDIVIDUALS WHO ARE DEAF AND 2196 01:45:57,120 --> 01:45:58,800 HARD OF HEARING TO HAVE A HOME 2197 01:45:58,800 --> 01:46:01,440 IN ONE OF THOSE INSTITUTIONS. 2198 01:46:01,440 --> 01:46:02,760 SO FOR EXAMPLE IF YOU HAVE A 2199 01:46:02,760 --> 01:46:04,960 GOOD NUMBER OF DEAF AND HARD OF 2200 01:46:04,960 --> 01:46:07,760 HEARING MENTORS, PEERS IN THAT 2201 01:46:07,760 --> 01:46:08,720 PARTICULAR INSTITUTION. 2202 01:46:08,720 --> 01:46:12,120 AND ALLOW FOR THEM TO TRAVEL TO 2203 01:46:12,120 --> 01:46:13,800 OTHER UNIVERSITIES TO HAVE A 2204 01:46:13,800 --> 01:46:15,560 VARIETY OF EXPERIENCES. 2205 01:46:15,560 --> 01:46:18,040 THAT WOULD BE THE MODEL THAT I 2206 01:46:18,040 --> 01:46:18,840 WOULD REQUEST. 2207 01:46:18,840 --> 01:46:22,880 WHEN APPLIED FOR MY F31 THAT IS 2208 01:46:22,880 --> 01:46:28,160 WHAT I -- HAD AND I NEEDED TO 2209 01:46:28,160 --> 01:46:29,920 TRAVEL 2210 01:46:29,920 --> 01:46:32,280 AND IT WAS NOT POSSIBLE AT THAT 2211 01:46:32,280 --> 01:46:34,040 TIME TO HAVE THE VIRTUAL MEANS 2212 01:46:34,040 --> 01:46:35,560 THAT WE HAVE NOW. 2213 01:46:35,560 --> 01:46:39,440 BUT IN ORDER TO MEET THE GIVEN 2214 01:46:39,440 --> 01:46:43,200 LIMITATIONS OF DEAF AND HARD OF 2215 01:46:43,200 --> 01:46:45,400 HEARING FOLKS NATIONWIDE AND 2216 01:46:45,400 --> 01:46:46,640 ALLOW FOR HIGH QUALITY TRAINING 2217 01:46:46,640 --> 01:46:51,040 THAT SUPPORT NEEDS TO HAPPEN IN 2218 01:46:51,040 --> 01:46:53,000 MULTIPLE INSTITUTIONS TO ALLOW 2219 01:46:53,000 --> 01:46:54,960 FOR THE COMPLIMENTARY 2220 01:46:54,960 --> 01:46:55,880 EXPERIENCE. 2221 01:46:55,880 --> 01:46:57,440 AND THAT WOULD INCREASE OUR 2222 01:46:57,440 --> 01:46:58,920 WORKFORCE. 2223 01:46:58,920 --> 01:46:59,680 >> THANK YOU. 2224 01:46:59,680 --> 01:47:01,920 AND ALBERTO NOTES IN THE CHAT 2225 01:47:01,920 --> 01:47:02,880 THAT -- 2226 01:47:02,880 --> 01:47:04,480 >> I WAS JUST GOING TO SAY THAT. 2227 01:47:04,480 --> 01:47:06,640 THANK YOU SO MUCH. 2228 01:47:06,640 --> 01:47:07,600 ABSOLUTELY. 2229 01:47:07,600 --> 01:47:11,720 OUR NEW DIVERSITY TARGETED R25 2230 01:47:11,720 --> 01:47:12,480 OFFERS THAT PARTNERSHIP. 2231 01:47:12,480 --> 01:47:13,560 THANK YOU. 2232 01:47:13,560 --> 01:47:14,280 >> THANK YOU. 2233 01:47:14,280 --> 01:47:16,400 THANK YOU BOTH FOR ALL OF YOUR 2234 01:47:16,400 --> 01:47:18,120 COMMENTS AND YOUR INSIGHTS. 2235 01:47:18,120 --> 01:47:19,880 IT'S SO VALUABLE FOR US TO HEAR 2236 01:47:19,880 --> 01:47:20,200 FROM YOU. 2237 01:47:20,200 --> 01:47:23,920 AND I APPLAUD YOU AND ALL OF 2238 01:47:23,920 --> 01:47:24,560 YOUR EFFORTS. 2239 01:47:24,560 --> 01:47:26,840 IT'S TRULY INSPIRATIONAL. 2240 01:47:26,840 --> 01:47:28,840 SO I THINK WE'LL BRING THIS 2241 01:47:28,840 --> 01:47:30,400 TOPIC TO A CLOSE. 2242 01:47:30,400 --> 01:47:35,760 AND WELCOME MIKE LAUER FOR OUR 2243 01:47:35,760 --> 01:47:37,320 NEXT AND LAST PRESENTATION. 2244 01:47:37,320 --> 01:47:40,240 THANK YOU. 2245 01:47:40,240 --> 01:47:44,320 SO -- DR. LAUER IS NIH'S DEPUTY 2246 01:47:44,320 --> 01:47:45,520 DIRECTOR FOR EXTRAMURAL 2247 01:47:45,520 --> 01:47:45,960 RESEARCH. 2248 01:47:45,960 --> 01:47:48,640 HE SERVES AS THE PRINCIPLE 2249 01:47:48,640 --> 01:47:50,960 SCIENTIFIC LEADER AND ADVISER TO 2250 01:47:50,960 --> 01:47:55,040 THE NIH DIRECTOR ON THE NIH 2251 01:47:55,040 --> 01:47:56,000 EXTRAMURAL RESEARCH PROGRAM. 2252 01:47:56,000 --> 01:47:58,440 TO KEEP UP WITH THE LATEST 2253 01:47:58,440 --> 01:48:00,800 TOPICS CHECK OUT HIS OPEN MIC 2254 01:48:00,800 --> 01:48:03,880 BLOG WHICH I DO ROUTINELY -- 2255 01:48:03,880 --> 01:48:05,520 OPEN AND READ BECAUSE IT'S 2256 01:48:05,520 --> 01:48:07,280 ALWAYS SO INTERESTING AND IT 2257 01:48:07,280 --> 01:48:08,880 AIMS TO CONNECT WITH 2258 01:48:08,880 --> 01:48:10,840 STAKEHOLDERS AND PROVIDE THE NIH 2259 01:48:10,840 --> 01:48:14,040 PERSPECTIVE ON A MULTITUDE OF 2260 01:48:14,040 --> 01:48:15,160 TOPICS. 2261 01:48:15,160 --> 01:48:17,360 MOST OF YOU KNOW THAT THE NIH 2262 01:48:17,360 --> 01:48:19,920 HAS RELEASED SOME NEW POLICIES 2263 01:48:19,920 --> 01:48:22,680 ON DATA SHARING AND I INVITED 2264 01:48:22,680 --> 01:48:24,640 MIKE HERE TO GIVE US MORE 2265 01:48:24,640 --> 01:48:26,880 DETAILS ABOUT THIS NEW DATA 2266 01:48:26,880 --> 01:48:30,240 SHARING POLICY. 2267 01:48:30,240 --> 01:48:32,000 >> WELCOME, MIKE. 2268 01:48:32,000 --> 01:48:32,720 >> GREAT. 2269 01:48:32,720 --> 01:48:35,720 MANY THANKS, AND I MUST SAY I 2270 01:48:35,720 --> 01:48:37,040 GREATLY ENJOYED THE PREVIOUS 2271 01:48:37,040 --> 01:48:37,480 DISCUSSION. 2272 01:48:37,480 --> 01:48:47,760 IT WAS VERY INTERESTING. 2273 01:48:47,760 --> 01:48:49,680 ARE YOU SEEING THE SLIDES? 2274 01:48:49,680 --> 01:48:49,960 >> YES. 2275 01:48:49,960 --> 01:48:50,560 WE ARE. 2276 01:48:50,560 --> 01:48:51,640 IT'S GOOD. 2277 01:48:51,640 --> 01:48:52,640 >> SO THANK YOU VERY MUCH FOR 2278 01:48:52,640 --> 01:48:53,640 THE OPPORTUNITY TO BE HERE 2279 01:48:53,640 --> 01:48:54,400 TODAY. 2280 01:48:54,400 --> 01:48:57,080 I'M GOING TO BE TALKING ABOUT 2281 01:48:57,080 --> 01:48:59,040 OUR DATA MANAGEMENT AND SHARING 2282 01:48:59,040 --> 01:49:01,360 POLICY WHICH WE'RE NOW IN THE 2283 01:49:01,360 --> 01:49:03,040 PROCESS OF IMPLEMENTING. 2284 01:49:03,040 --> 01:49:04,240 THIS WAS VERY MUCH A TEAM 2285 01:49:04,240 --> 01:49:06,960 EFFORT. 2286 01:49:06,960 --> 01:49:11,160 WANT TO RECOGNIZE DR. LARA 2287 01:49:11,160 --> 01:49:12,880 JORGENSON. 2288 01:49:12,880 --> 01:49:14,280 ALONG WITH A NUMBER OF 2289 01:49:14,280 --> 01:49:15,920 COLLEAGUES. 2290 01:49:15,920 --> 01:49:19,200 DATA SHARING IS NOT A NEW IDEA. 2291 01:49:19,200 --> 01:49:21,400 AND THE IDEA THAT GOVERNMENT 2292 01:49:21,400 --> 01:49:24,760 FUNDED RESEARCH RESEARCHERS 2293 01:49:24,760 --> 01:49:26,360 SHOULD SHARE THEIR DATA IS ONE 2294 01:49:26,360 --> 01:49:28,200 THAT COMES FROM THE HIGHEST 2295 01:49:28,200 --> 01:49:31,600 LITERALLY THE HIGHEST LEVELS OF 2296 01:49:31,600 --> 01:49:31,920 GOVERNMENT. 2297 01:49:31,920 --> 01:49:33,560 WHEN -- PRINCE EDWARDS BIDEN WAS 2298 01:49:33,560 --> 01:49:36,600 VICE PRESIDENT -- HE PLAYED A 2299 01:49:36,600 --> 01:49:40,360 MAJOR ROLE IN THE LAUNCHING OF 2300 01:49:40,360 --> 01:49:46,360 THE SO-CALLED CANCER MOONSHOT. 2301 01:49:46,360 --> 01:49:48,480 THE 21st CENTURY CURES ACT 2302 01:49:48,480 --> 01:49:50,920 WAS PASSED WITH OVERWHELMING 2303 01:49:50,920 --> 01:49:53,680 BIPARTISAN SUPPORT IN 2304 01:49:53,680 --> 01:49:54,560 DECEMBER 2016. 2305 01:49:54,560 --> 01:49:56,960 IN THERE IS A PROVISION THAT 2306 01:49:56,960 --> 01:49:59,320 STATES THAT THE NIH DIRECTOR HAS 2307 01:49:59,320 --> 01:50:01,200 THE AUTHORITY TO REQUIRE DATA 2308 01:50:01,200 --> 01:50:03,400 SHARING FOR ALL GRANTS 2309 01:50:03,400 --> 01:50:05,480 RECIPIENTS. 2310 01:50:05,480 --> 01:50:07,280 DATA SHARING POLICIES ARE NOT 2311 01:50:07,280 --> 01:50:08,440 NEW. 2312 01:50:08,440 --> 01:50:13,080 AND GO BACK EVEN FARTHER THAN 2313 01:50:13,080 --> 01:50:16,400 THE MOONSHOT OR THE 21st 2314 01:50:16,400 --> 01:50:17,400 CENTURIES CURE ACT. 2315 01:50:17,400 --> 01:50:19,880 THE CURRENT POLICY GOES BACK TO 2316 01:50:19,880 --> 01:50:20,600 2003. 2317 01:50:20,600 --> 01:50:25,880 IT A -- APPLIES TO OUR GRANTS 2318 01:50:25,880 --> 01:50:28,200 THAT USE MORE THAN $500 THAT YOU 2319 01:50:28,200 --> 01:50:28,840 A YEAR. 2320 01:50:28,840 --> 01:50:30,400 AND YOU'RE FAMILIAR WITH SOME OF 2321 01:50:30,400 --> 01:50:32,080 THE OTHERS. 2322 01:50:32,080 --> 01:50:37,200 THE 2014 GENOMIC DATA SHARING. 2323 01:50:37,200 --> 01:50:40,600 AND IN 2016 WE ISSUED 2324 01:50:40,600 --> 01:50:41,960 REQUIREMENTS REGARDING REQUIRED 2325 01:50:41,960 --> 01:50:44,720 REGISTRATION AND REPORTING OF 2326 01:50:44,720 --> 01:50:45,720 CLINICAL TRIALS. 2327 01:50:45,720 --> 01:50:48,320 AND A VARIETY OF OTHERS AS WELL 2328 01:50:48,320 --> 01:50:50,280 THAT YOU MAY BE FAMILIAR WITH 2329 01:50:50,280 --> 01:50:51,920 INCLUDING THE AUTISM DATA 2330 01:50:51,920 --> 01:50:57,280 SHARING POLICY. 2331 01:50:57,280 --> 01:51:02,960 SO SINCE 2016 WHEN THE 21st 2332 01:51:02,960 --> 01:51:04,520 CENTURY CURES ACT WAS PASSED 2333 01:51:04,520 --> 01:51:07,840 THERE HAS BEEN A LONG ARC OF 2334 01:51:07,840 --> 01:51:08,640 ITERATION. 2335 01:51:08,640 --> 01:51:13,040 MUCH WAS LED BY MY COLLEAGUES. 2336 01:51:13,040 --> 01:51:15,720 POLICIES -- A POLICY WAS 2337 01:51:15,720 --> 01:51:16,160 DRAFTED. 2338 01:51:16,160 --> 01:51:18,920 IT WAS PUT OUT FOR PUBLIC 2339 01:51:18,920 --> 01:51:20,640 REVIEW. 2340 01:51:20,640 --> 01:51:22,240 WE RECEIVED EXTENSIVE PUBLIC 2341 01:51:22,240 --> 01:51:23,200 COMMENTS AND HAD THE OPPORTUNITY 2342 01:51:23,200 --> 01:51:25,880 TO RESPOND TO THEM. 2343 01:51:25,880 --> 01:51:27,120 7 AND IN ADDITION THERE WERE A 2344 01:51:27,120 --> 01:51:31,120 VARIETY OF OTHER WORKING GROUPS, 2345 01:51:31,120 --> 01:51:31,840 CONSULTATIONS THAT HAPPENED AS 2346 01:51:31,840 --> 01:51:36,000 WELL. 2347 01:51:36,000 --> 01:51:39,520 SO THE POLICY -- ITSELF WILL BE 2348 01:51:39,520 --> 01:51:42,600 IMPLEMENTED IN JANUARY OF 2023. 2349 01:51:42,600 --> 01:51:44,360 NOT THAT LONG FROM NOW AND THERE 2350 01:51:44,360 --> 01:51:46,400 ARE ESSENTIALLY TWO BASIC 2351 01:51:46,400 --> 01:51:47,600 REQUIREMENTS. 2352 01:51:47,600 --> 01:51:51,800 THE FIRST IS THAT WITH ANY GRANT 2353 01:51:51,800 --> 01:51:53,840 APPLICATION THAT INVOLVES THE 2354 01:51:53,840 --> 01:51:56,040 LIKELY GENERATION OF DATA THERE 2355 01:51:56,040 --> 01:51:57,480 NEEDS TO BE A PLAN. 2356 01:51:57,480 --> 01:51:59,480 SO THERE NEEDS TO BE A PLAN THAT 2357 01:51:59,480 --> 01:52:01,080 DESCRIBES DATA MANAGEMENT AND 2358 01:52:01,080 --> 01:52:02,840 DATA SHARING. 2359 01:52:02,840 --> 01:52:05,360 AND THIS WILL BE APPLICABLE TO 2360 01:52:05,360 --> 01:52:07,840 ALL NIH FUNDED RESEARCH. 2361 01:52:07,840 --> 01:52:10,640 7 SO PART ONE IS THAT THERE 2362 01:52:10,640 --> 01:52:11,960 NEEDS TO BE A PLAN SUBMITTED 2363 01:52:11,960 --> 01:52:13,320 WITH THE APPLICATION. 2364 01:52:13,320 --> 01:52:15,520 PART TWO IS THAT ONCE THAT PLAN 2365 01:52:15,520 --> 01:52:18,720 IS APPROVED IT BECOMES A 2366 01:52:18,720 --> 01:52:21,000 CONDITION OF AWARDS AND GRANT 2367 01:52:21,000 --> 01:52:22,680 RECIPIENTS WILL BE EXPECT TO BE 2368 01:52:22,680 --> 01:52:24,800 COMPLIANT WITH THEIR OWN PLAN. 2369 01:52:24,800 --> 01:52:29,080 THIS BECOMES EFFECTIVE ON 2370 01:52:29,080 --> 01:52:29,640 JANUARY 25,2023. 2371 01:52:29,640 --> 01:52:32,680 NOW THE PLAN -- ALLOWS A GREAT 2372 01:52:32,680 --> 01:52:36,200 DEAL OF FLEXIBILITY AND THIS IS 2373 01:52:36,200 --> 01:52:37,240 QUITE DELIBERATE. 2374 01:52:37,240 --> 01:52:39,120 BECAUSE WE KNOW THERE IS A WIDE 2375 01:52:39,120 --> 01:52:41,120 RANGE OF SCIENCE THAT NIH FUNDS 2376 01:52:41,120 --> 01:52:46,360 AND WHAT MIGHT BE APPLICABLE TO 2377 01:52:46,360 --> 01:52:48,720 MOLECULAR BIOLOGY RESEARCH MIGHT 2378 01:52:48,720 --> 01:52:51,960 BE DIFFERENT TO A PHASE TWO OR 2379 01:52:51,960 --> 01:52:54,520 PHASE III CLINICAL TRIAL. 2380 01:52:54,520 --> 01:52:56,200 SOME GENERAL PRINCIPLES HERE. 2381 01:52:56,200 --> 01:52:58,080 ONE IS THAT THE DEFAULT PRACTICE 2382 01:52:58,080 --> 01:53:01,480 SHOULD BE THE DATA SHARING IS 2383 01:53:01,480 --> 01:53:02,440 MAXIMIZED. 2384 01:53:02,440 --> 01:53:03,840 WE UNDERSTAND THAT THERE ARE 2385 01:53:03,840 --> 01:53:06,360 REASONS WHY DATA CANNOT BE FULLY 2386 01:53:06,360 --> 01:53:07,840 SHARED AND THAT IS SOMETHING 2387 01:53:07,840 --> 01:53:09,600 THAT WOULD BE INCORPORATED AS 2388 01:53:09,600 --> 01:53:11,080 PART OF THE PLAN. 2389 01:53:11,080 --> 01:53:14,120 WE EXPECT THAT DATA SHARING WILL 2390 01:53:14,120 --> 01:53:16,760 BE DONE IN A RESPONSIBLE WAY. 2391 01:53:16,760 --> 01:53:18,760 AND THAT INCLUDES PROTECTION OF 2392 01:53:18,760 --> 01:53:20,560 PRIVACY RIGHTS AND 2393 01:53:20,560 --> 01:53:22,400 CONFIDENTIALITY AS WELL AS 2394 01:53:22,400 --> 01:53:24,720 OBSERVANCE OF ALL APPLICABLE 2395 01:53:24,720 --> 01:53:26,080 LAWS AND REGULATIONS AND 2396 01:53:26,080 --> 01:53:27,400 POLICIES. 2397 01:53:27,400 --> 01:53:30,360 PART OF THE IDEA OF HAVING IT 2398 01:53:30,360 --> 01:53:33,120 COME IN AT THE TIME OF 2399 01:53:33,120 --> 01:53:35,080 APPLICATION IT'S PLANNED AT ALL 2400 01:53:35,080 --> 01:53:36,880 STAGES OF THE RESEARCH PROCESS. 2401 01:53:36,880 --> 01:53:38,200 WE UNDERSTAND THAT THINGS CAN 2402 01:53:38,200 --> 01:53:39,840 CHANGE OVER TIME. 2403 01:53:39,840 --> 01:53:42,600 SO HERES A GENERAL LOOK AT HOW 2404 01:53:42,600 --> 01:53:44,240 THE PROCESS WILL WORK. 2405 01:53:44,240 --> 01:53:46,760 WE'RE STILL IN THE PROCESS OF 2406 01:53:46,760 --> 01:53:51,160 FINALIZING IT SO THIS MAY NOT BE 2407 01:53:51,160 --> 01:53:52,640 EXACTLY WHAT THE FINAL PODGE 2408 01:53:52,640 --> 01:53:55,040 WILL LOOK LIKE. 2409 01:53:55,040 --> 01:53:56,400 THE PLAN WILL BE SUBMITTED WITH 2410 01:53:56,400 --> 01:53:57,680 THE APPLICATION. 2411 01:53:57,680 --> 01:53:58,640 THERE WILL BE TWO PARTS. 2412 01:53:58,640 --> 01:54:00,640 ONE IS A BRIEF DESCRIPTION OF 2413 01:54:00,640 --> 01:54:02,880 THE PLAN AND THE BUDGET 2414 01:54:02,880 --> 01:54:03,720 JUSTIFICATION SECTION. 2415 01:54:03,720 --> 01:54:05,400 THAT IS DELIBERATE BECAUSE WE 2416 01:54:05,400 --> 01:54:07,080 RECOGNIZE THAT THE DATA SHARING 2417 01:54:07,080 --> 01:54:08,040 COST MONEY. 2418 01:54:08,040 --> 01:54:11,680 AND SO WE WANT YOU AND YOUR 2419 01:54:11,680 --> 01:54:14,080 GRANTS OFFICIALS TO BE THINKING 2420 01:54:14,080 --> 01:54:15,800 HARD ABOUT HOW MUCH MONEY THIS 2421 01:54:15,800 --> 01:54:17,520 MAY COST. 2422 01:54:17,520 --> 01:54:19,880 MAKE SURE THAT IS APPROPRIATELY 2423 01:54:19,880 --> 01:54:23,160 INCORPORATED INTO THE BUDGET. 2424 01:54:23,160 --> 01:54:27,440 th ATTACHMENT -- WE VIEW AS 2425 01:54:27,440 --> 01:54:28,400 ADMINISTRATIVE ITEM. 2426 01:54:28,400 --> 01:54:30,320 A VERY IMPORTANT ADMINISTRATIVE 2427 01:54:30,320 --> 01:54:32,560 ITEM BUT IT'S NOT SOMETHING THAT 2428 01:54:32,560 --> 01:54:34,000 ORDINARILY WILL BE LOOKED AT BY 2429 01:54:34,000 --> 01:54:35,520 PEER REVIEWERS. 2430 01:54:35,520 --> 01:54:37,640 BUT RATHER WILL BE ASSESSED BY 2431 01:54:37,640 --> 01:54:39,680 OUR STAFF. 2432 01:54:39,680 --> 01:54:42,000 PLANS CAN BE REVISED OVER TIME. 2433 01:54:42,000 --> 01:54:43,720 JUST LIKE ANYBODY ELSE IN LIFE. 2434 01:54:43,720 --> 01:54:45,520 WE RECOGNIZE THAT PLANS CAN 2435 01:54:45,520 --> 01:54:46,280 CHANGE. 2436 01:54:46,280 --> 01:54:47,880 AND THAT IS ALL PERFECTLY FINE. 2437 01:54:47,880 --> 01:54:52,080 AS LONG AS THAT IS DONE IN CLOSE 2438 01:54:52,080 --> 01:54:53,720 COORDINATION WITH NIH STAFF. 2439 01:54:53,720 --> 01:54:55,760 THE PLAN ITSELF ONE IT IS AGREED 2440 01:54:55,760 --> 01:54:56,960 UPON WILL BE INCORPORATED INTO 2441 01:54:56,960 --> 01:54:58,560 THE TERMS AND CONDITIONS OF THE 2442 01:54:58,560 --> 01:55:00,240 AWARD AND THEN MONITORED OVER 2443 01:55:00,240 --> 01:55:04,200 TIME. 2444 01:55:04,200 --> 01:55:05,800 NOW, ONE OF THE BIGGEST 2445 01:55:05,800 --> 01:55:08,640 QUESTIONS THAT WE GET IS WHAT 2446 01:55:08,640 --> 01:55:11,160 DATA NEEDS TO BE SHARED. 2447 01:55:11,160 --> 01:55:14,240 SO WE USE A DEFINITION OF 2448 01:55:14,240 --> 01:55:17,320 SCIENTIFIC DATA WHICH IS 2449 01:55:17,320 --> 01:55:20,520 SCIENTIFIC DATA IS RECORDED 2450 01:55:20,520 --> 01:55:22,720 FACTUAL MATERIAL TO VALIDATE 2451 01:55:22,720 --> 01:55:24,360 RESEARCH FINDINGS. 2452 01:55:24,360 --> 01:55:27,280 NOW EXACTLY WHAT THAT IS DEPENDS 2453 01:55:27,280 --> 01:55:28,600 UPON THE RESEARCH THAT IS BEING 2454 01:55:28,600 --> 01:55:29,160 DONE. 2455 01:55:29,160 --> 01:55:31,560 DATA SHARING DOES NOT INCLUDE 2456 01:55:31,560 --> 01:55:34,560 LABORATORY NOTEBOOKS, CASE 2457 01:55:34,560 --> 01:55:38,320 REPORT FORMS FOR EPIDEMIOLOGY 2458 01:55:38,320 --> 01:55:39,960 STUDIES OR TRIALS OR PHYSICAL 2459 01:55:39,960 --> 01:55:40,720 OBJECTS. 2460 01:55:40,720 --> 01:55:42,480 THE GENERAL IDEA IS THAT DATA 2461 01:55:42,480 --> 01:55:43,640 SHOULD BE AVAILABLE AT THE TIME 2462 01:55:43,640 --> 01:55:46,240 OF PUBLICATION AND FOR THOSE 2463 01:55:46,240 --> 01:55:48,280 DATA THAT DO NOT GET PUBLISHED 2464 01:55:48,280 --> 01:55:50,440 THEY SHOULD BE MADE AVAILABLE AT 2465 01:55:50,440 --> 01:55:56,040 THE END OF AN AWARD. 2466 01:55:56,040 --> 01:55:58,280 SO HOW DO WE GET TO WHERE WE'RE 2467 01:55:58,280 --> 01:55:58,720 GOING? 2468 01:55:58,720 --> 01:56:00,760 THERE IS A LOT OF MATERIAL OUT 2469 01:56:00,760 --> 01:56:01,080 RIGHT NOW. 2470 01:56:01,080 --> 01:56:02,960 I'M GOING TO SHARE SOME OF THAT 2471 01:56:02,960 --> 01:56:03,800 WITH YOU. 2472 01:56:03,800 --> 01:56:06,880 THANK YOU DEB FOR THE PLUG ON 2473 01:56:06,880 --> 01:56:10,600 OPEN MIC AND I WANT TO PLUG MY 2474 01:56:10,600 --> 01:56:15,240 COLLEAGUE DR. LARRY JORGENSON. 2475 01:56:15,240 --> 01:56:17,320 WE HAVE ALREADY PUT OUT A 2476 01:56:17,320 --> 01:56:19,480 WEBINAR AND AN FAQs AND THERE 2477 01:56:19,480 --> 01:56:21,560 WILL BE MORE COMING OVER THE 2478 01:56:21,560 --> 01:56:23,400 COURSE OF THE NEXT FEW MONTHS. 2479 01:56:23,400 --> 01:56:25,480 WE'VE PUT OUT DRAFT GUIDANCE FOR 2480 01:56:25,480 --> 01:56:29,840 RESEARCHERS WHO ARE WORKING WITH 2481 01:56:29,840 --> 01:56:30,720 -- PARTICIPANTS. 2482 01:56:30,720 --> 01:56:32,600 WE WILL BE PUTTING OUT 2483 01:56:32,600 --> 01:56:34,520 ADDITIONAL SUPPLEMENTAL 2484 01:56:34,520 --> 01:56:36,240 INFORMATION. 2485 01:56:36,240 --> 01:56:37,360 COST CONSIDERS AND PRIVACY 2486 01:56:37,360 --> 01:56:38,440 PROTECTION. 2487 01:56:38,440 --> 01:56:40,200 WE'RE WORKING ON SAMPLE PLANS. 2488 01:56:40,200 --> 01:56:42,200 WE IMAGINE THAT AS TIME GOES ON 2489 01:56:42,200 --> 01:56:44,600 AND WE START TO SEE SOME 2490 01:56:44,600 --> 01:56:46,640 OUTSTANDING SAMPLE PLANS THAT WE 2491 01:56:46,640 --> 01:56:49,200 WILL PUT THOSE UP OR WE'LL PUT 2492 01:56:49,200 --> 01:56:51,040 THOSE UP WITH APPROPRIATE 2493 01:56:51,040 --> 01:56:52,800 REVISIONS OR REDACTIONS. 2494 01:56:52,800 --> 01:56:55,800 MANY OF YOU ARE AWARE THAT WE'VE 2495 01:56:55,800 --> 01:56:58,640 HAD A GENOMIC SHARING PLAN. 2496 01:56:58,640 --> 01:57:00,200 WE'RE NOT GOING TO BE ASKING 2497 01:57:00,200 --> 01:57:02,520 PEOPLE TO SUBMIT TWO PLANS. 2498 01:57:02,520 --> 01:57:05,520 ONE FOR GENOMICS AND ONE IN 2499 01:57:05,520 --> 01:57:07,000 DATA. ONLY ONE. 2500 01:57:07,000 --> 01:57:13,320 WE'RE WORKING ON HARM O -- 2501 01:57:13,320 --> 01:57:14,360 HARMONIZING. 2502 01:57:14,360 --> 01:57:14,720 *. 2503 01:57:14,720 --> 01:57:16,400 WE WILL BE ASSESSING HOW WELL 2504 01:57:16,400 --> 01:57:17,480 THINGS ARE GOING. 2505 01:57:17,480 --> 01:57:19,000 WHAT WAS GOING WELL AND WHAT IS 2506 01:57:19,000 --> 01:57:20,600 NOT. 2507 01:57:20,600 --> 01:57:24,040 AND ONE VERY INTERESTING TOPIC 2508 01:57:24,040 --> 01:57:27,240 -- IS HOW CAN WE MAKE DATA 2509 01:57:27,240 --> 01:57:29,480 SHARING MORE PART OF THE NATURE 2510 01:57:29,480 --> 01:57:31,600 AND CULTURE OF SCIENCE? 2511 01:57:31,600 --> 01:57:33,600 JUST LIKE PUBLICATION IS PART OF 2512 01:57:33,600 --> 01:57:36,240 THE NATURE AND CULTURE OF 2513 01:57:36,240 --> 01:57:36,800 SCIENCE. 2514 01:57:36,800 --> 01:57:38,880 WE ALL WANT TO PUBLISH OUR WORK. 2515 01:57:38,880 --> 01:57:41,000 WE WOULD LIKE TO SEE SOMETHING 2516 01:57:41,000 --> 01:57:43,080 SIMILAR FOR DATA SHARE. 2517 01:57:43,080 --> 01:57:45,640 IN ORDER TO LEARN MORE I 2518 01:57:45,640 --> 01:57:47,400 ENCOURAGE YOU TO GO TO THIS 2519 01:57:47,400 --> 01:57:47,960 WEBSITE. 2520 01:57:47,960 --> 01:57:52,760 AN EASY URL TO REMEMBER. 2521 01:57:52,760 --> 01:57:57,040 SHARING.NIH.GOV. 2522 01:57:57,040 --> 01:58:02,000 THIS WAS A LABOR OF LOVE AND WE 2523 01:58:02,000 --> 01:58:03,480 WOULD APPRECIATE YOUR FEEDBACK 2524 01:58:03,480 --> 01:58:05,240 ABOUT WHAT IS MISSING SO THAT 2525 01:58:05,240 --> 01:58:08,400 WILL HELP US MAKE THIS BETTER. 2526 01:58:08,400 --> 01:58:11,800 THIS NOT ONLY LOOKS AT THE DATA 2527 01:58:11,800 --> 01:58:14,360 SHARING POLICY. 2528 01:58:14,360 --> 01:58:17,440 IT ALSO INCLUDES GENOMIC DATE & 2529 01:58:17,440 --> 01:58:18,320 CLINICAL TRIALS. 2530 01:58:18,320 --> 01:58:20,320 THERE IS A RESOURCE BY WHICH YOU 2531 01:58:20,320 --> 01:58:22,000 CAN FIGURE OUT WHICH POLICIES 2532 01:58:22,000 --> 01:58:24,760 MIGHT APPLY TO YOUR SPECIFIC 2533 01:58:24,760 --> 01:58:25,200 GRANT. 2534 01:58:25,200 --> 01:58:25,760 THE GENERAL STRUCTURE OF THE 2535 01:58:25,760 --> 01:58:27,880 SITE IS THAT WE COVER THE DATA 2536 01:58:27,880 --> 01:58:29,240 MANAGEMENT AND SHARING POLICY 2537 01:58:29,240 --> 01:58:32,000 WHICH IS THE MAIN THING COMING 2538 01:58:32,000 --> 01:58:32,560 UP NOW. 2539 01:58:32,560 --> 01:58:34,720 WE HAVE A LOT MORE INFORMATION 2540 01:58:34,720 --> 01:58:38,800 NOW IN ONE PLACE. 2541 01:58:38,800 --> 01:58:41,480 OTHER SHARING POLICIES THAT MAY 2542 01:58:41,480 --> 01:58:44,520 BE HELD BY VARIOUS ICs. 2543 01:58:44,520 --> 01:58:46,600 WE HAVE A SECTION ON ACCESSING 2544 01:58:46,600 --> 01:58:48,160 DATA SO FOR PEOPLE WHO ARE 2545 01:58:48,160 --> 01:58:50,080 INTERESTED IN ACCESSING DATA 2546 01:58:50,080 --> 01:58:52,680 THAT OTHER PEOPLE ARE SHARING . 2547 01:58:52,680 --> 01:58:55,440 AND THEN WE HAVE SOME OTHER 2548 01:58:55,440 --> 01:58:56,320 MISCELLANEOUS MATERIALS. 2549 01:58:56,320 --> 01:58:57,560 WE HAVE RESOURCES THAT ARE 2550 01:58:57,560 --> 01:58:58,520 AVAILABLE HERE. 2551 01:58:58,520 --> 01:59:00,800 SUCH AS A DECISION TOOL WHERE 2552 01:59:00,800 --> 01:59:02,640 YOU CAN FIGURE OUT WHAT POLICIES 2553 01:59:02,640 --> 01:59:04,320 MIGHT APPLY TO YOUR SPECIFIC 2554 01:59:04,320 --> 01:59:06,640 RESEARCH. 2555 01:59:06,640 --> 01:59:08,480 INFORMATION ON STEP-BY-STEP 2556 01:59:08,480 --> 01:59:11,400 INSTRUCTIONS ON CERTAIN ITEMS 2557 01:59:11,400 --> 01:59:12,680 THAT NEED TO BE COMPLETED. 2558 01:59:12,680 --> 01:59:15,080 FOR THE DATA MANAGEMENT AND 2559 01:59:15,080 --> 01:59:16,720 SHARING POLICY WE HAVE BIG 2560 01:59:16,720 --> 01:59:21,320 SECTIONS HERE ON PLANNING AND 2561 01:59:21,320 --> 01:59:21,760 BUDGETING. 2562 01:59:21,760 --> 01:59:23,440 THIS IS HOW DO YOU PUT YOUR PLAN 2563 01:59:23,440 --> 01:59:25,360 TOGETHER AND WHAT TYPES OF 2564 01:59:25,360 --> 01:59:27,720 THINGS SHOULD YOU BE PUTTING IN? 2565 01:59:27,720 --> 01:59:29,480 WE HAVE DESCRIPTIONS HERE ON 2566 01:59:29,480 --> 01:59:31,680 BEST PRACTICES. 2567 01:59:31,680 --> 01:59:33,240 WE ALSO HAVE INFORMATION HERE 2568 01:59:33,240 --> 01:59:37,040 OFF DATA REPOSITORIES. 2569 01:59:37,040 --> 01:59:39,040 AND WHEN THE ORIGINAL POLICY 2570 01:59:39,040 --> 01:59:41,880 CAME OUT IN OCTOBER OF 2020 WE 2571 01:59:41,880 --> 01:59:43,240 INCLUDED IN THERE SOME 2572 01:59:43,240 --> 01:59:45,120 INFORMATION ABOUT WHAT 2573 01:59:45,120 --> 01:59:48,560 CONSTITUTES A HIGH QUALITY 2574 01:59:48,560 --> 01:59:49,320 REPOSITORY. 2575 01:59:49,320 --> 01:59:52,320 WE PROVIDE INFORMATION ON IC 2576 01:59:52,320 --> 01:59:54,640 SPECIFIC REPOSITORIES AS WELL AS 2577 01:59:54,640 --> 01:59:56,600 GENERAL REPOSITORIES THAT YOU 2578 01:59:56,600 --> 01:59:58,040 MIGHT FIND USEFUL. 2579 01:59:58,040 --> 02:00:00,560 NOW THE WEBSITE REFLECTS THE 2580 02:00:00,560 --> 02:00:02,440 FACT THAT WE'RE IN A PERIOD OF 2581 02:00:02,440 --> 02:00:02,880 TRANSITION. 2582 02:00:02,880 --> 02:00:05,080 FOR EXAMPLE, IF YOU GO TO THE 2583 02:00:05,080 --> 02:00:07,880 DATA MANAGEMENT AND SHARING TAB 2584 02:00:07,880 --> 02:00:10,400 BUTTON THERE YOU'LL GET THIS. 2585 02:00:10,400 --> 02:00:15,040 AND SO YOU CAN GET INFORMATION 2586 02:00:15,040 --> 02:00:18,080 -- BEFORE JANUARY OF 2023. 2587 02:00:18,080 --> 02:00:20,240 THAT IS WHAT IS RELEVANT NOW AND 2588 02:00:20,240 --> 02:00:26,600 FOR APPLICATIONS ON OR AFTER 2589 02:00:26,600 --> 02:00:28,480 JANUARY 25, 2023 WHICH IS WHEN 2590 02:00:28,480 --> 02:00:30,480 THE NEW POLICY GOES INTO PLAY. 2591 02:00:30,480 --> 02:00:33,560 EVENT.E A PAGE ON NEWS AND 2592 02:00:33,560 --> 02:00:34,640 WE HAVE COMING UP. 2593 02:00:34,640 --> 02:00:36,400 THERE IS A WEBINAR COMING UP 2594 02:00:36,400 --> 02:00:38,600 NEXT TUESDAY. 2595 02:00:38,600 --> 02:00:40,800 FROM THE NATIONAL LIBRARY OF 2596 02:00:40,800 --> 02:00:44,560 MEDICINE POLICY AND RECAP AND -- 2597 02:00:44,560 --> 02:00:45,080 Q&A. 2598 02:00:45,080 --> 02:00:47,200 SO WE URGE YOU TO PLEASE SHARE 2599 02:00:47,200 --> 02:00:50,160 THIS WITH YOUR COLLEAGUES AND 2600 02:00:50,160 --> 02:00:51,280 STAFF. 2601 02:00:51,280 --> 02:00:53,120 THERE ARE A LOT OF QUESTIONS. 2602 02:00:53,120 --> 02:00:59,840 AND WE'RE TRYING TO SYNTHESIZE 2603 02:00:59,840 --> 02:01:01,800 THEM AHEAD OF TIME. 2604 02:01:01,800 --> 02:01:04,240 ONE IS -- WE HEAR CRITICISMS 2605 02:01:04,240 --> 02:01:07,320 THAT THE POLICIES ARE TOO 2606 02:01:07,320 --> 02:01:09,800 FLEXIBLE AND THEN WE ALSO HEAR 2607 02:01:09,800 --> 02:01:11,400 THAT IT'S TOO PRESCRIBED. 2608 02:01:11,400 --> 02:01:13,720 SO AS MUCH AS POSSIBLE WE'RE 2609 02:01:13,720 --> 02:01:15,320 TRYING TO PROVIDE GUIDANCE ON 2610 02:01:15,320 --> 02:01:16,160 THAT. 2611 02:01:16,160 --> 02:01:17,720 WHERE IS THE MONEY COMING FROM? 2612 02:01:17,720 --> 02:01:20,400 THE MONEY IS -- WE RECOGNIZE 2613 02:01:20,400 --> 02:01:23,040 THAT PROPER MANAGEMENT AND 2614 02:01:23,040 --> 02:01:25,240 SHARING OF DATA COST MONEY. 2615 02:01:25,240 --> 02:01:28,080 SO SOME OF THE COSTS ARE 2616 02:01:28,080 --> 02:01:30,120 ALLOWABLE AND THEN THERE ARE 2617 02:01:30,120 --> 02:01:32,320 OTHERS COVERED BY IN DIRECT COST 2618 02:01:32,320 --> 02:01:34,640 AND OUR WEBSITE HAS SOME 2619 02:01:34,640 --> 02:01:35,480 INFORMATION ON THAT. 2620 02:01:35,480 --> 02:01:37,200 WILL THE PLANS BE MADE PUBLIC? 2621 02:01:37,200 --> 02:01:38,040 YES. 2622 02:01:38,040 --> 02:01:40,000 WE WILL BE POSTING DATA 2623 02:01:40,000 --> 02:01:42,560 MANAGEMENT SHARING PLANS 2624 02:01:42,560 --> 02:01:44,600 PROBABLY ON REPORTER. 2625 02:01:44,600 --> 02:01:47,800 ALTHOUGH EXACTLY HOW THAT IS 2626 02:01:47,800 --> 02:01:49,840 GOING TO BE WILL HAPPEN IS STILL 2627 02:01:49,840 --> 02:01:51,240 BEING WORKED OUT BUT THAT WILL 2628 02:01:51,240 --> 02:01:53,400 BE A WAY BY WHICH YOU CAN SEE 2629 02:01:53,400 --> 02:01:55,520 FROM YOUR COLLEAGUE'S WORK WHAT 2630 02:01:55,520 --> 02:01:57,480 DATA MIGHT BE AVAILABLE. 2631 02:01:57,480 --> 02:02:00,440 AND THAT YOU MIGHT WANT TO USE. 2632 02:02:00,440 --> 02:02:02,680 AND THAT IS ALSO THE -- ONE WAY 2633 02:02:02,680 --> 02:02:04,840 IN WHICH YOU'LL COMMUNICATE TO 2634 02:02:04,840 --> 02:02:06,360 YOUR COLLEAGUES. 2635 02:02:06,360 --> 02:02:08,360 SO LET ME CONCLUDE BY SAYING 2636 02:02:08,360 --> 02:02:10,920 THAT DATA SHARING HAS LONG BEEN 2637 02:02:10,920 --> 02:02:11,600 EXPECTED. 2638 02:02:11,600 --> 02:02:14,560 AND IT'S SOMETHING THAT IS 2639 02:02:14,560 --> 02:02:16,200 EXPECTED AS I SAID BEFORE 2640 02:02:16,200 --> 02:02:18,560 LITERALLY THE HIGHEST LEVELS OF 2641 02:02:18,560 --> 02:02:19,960 GOVERNMENT. 2642 02:02:19,960 --> 02:02:23,240 OUR NEW POLICY RAISES THE LEVEL 2643 02:02:23,240 --> 02:02:25,840 EXTENDED DEPTH OF DATA SHARING. 2644 02:02:25,840 --> 02:02:27,840 THE IMPLEMENTATION WILL BE 2645 02:02:27,840 --> 02:02:29,280 JANUARY OF 2023. 2646 02:02:29,280 --> 02:02:32,240 SO, THAT IS STILL A WAYS AWAY. 2647 02:02:32,240 --> 02:02:35,120 AND ON THE OTHER HAND THAT'S NOT 2648 02:02:35,120 --> 02:02:38,920 THAT FAR OFF. 2649 02:02:38,920 --> 02:02:41,920 WE ENABLED BOTH NIH AS WELL AS 2650 02:02:41,920 --> 02:02:43,440 THE COMMUNITY THE OPPORTUNITY TO 2651 02:02:43,440 --> 02:02:45,200 GET READY FOR THIS. 2652 02:02:45,200 --> 02:02:49,600 WE RECOGNIZE THAT AS IS TRUE 2653 02:02:49,600 --> 02:02:51,800 WHEN YOU'RE DOING SOMETHING BIG 2654 02:02:51,800 --> 02:02:53,240 THAT THERE WILL BE TEACHING 2655 02:02:53,240 --> 02:02:54,120 OPPORTUNITIES. 2656 02:02:54,120 --> 02:02:55,880 AND LEARNING OPPORTUNITIES. 2657 02:02:55,880 --> 02:02:58,200 AND SO THIS WILL BE A CONTINUOUS 2658 02:02:58,200 --> 02:03:00,760 LEARNING PROCESS AFTER 2659 02:03:00,760 --> 02:03:02,080 JANUARY 2023. 2660 02:03:02,080 --> 02:03:04,400 THE BASIC REQUIREMENTS ARE ONLY 2661 02:03:04,400 --> 02:03:05,680 TWO. 2662 02:03:05,680 --> 02:03:07,640 THERE NEEDS TO BE A DATA 2663 02:03:07,640 --> 02:03:09,120 MANAGEMENT AND SHARING PLAN THAT 2664 02:03:09,120 --> 02:03:11,960 COMES IN WITH THE APPLICATION. 2665 02:03:11,960 --> 02:03:13,840 THAT PLAN WILL THEN NEED TO BE 2666 02:03:13,840 --> 02:03:15,120 APPROVED BY NIH STAFF AND ONCE 2667 02:03:15,120 --> 02:03:17,600 THAT IS APPROVED IT BECOMES 2668 02:03:17,600 --> 02:03:19,160 PART OF THE TERMS AND CONDITIONS 2669 02:03:19,160 --> 02:03:22,120 OF AWARDS SO GRANT RECIPIENTS 2670 02:03:22,120 --> 02:03:23,800 WILL BE REQUIRED TO BE COMPLIANT 2671 02:03:23,800 --> 02:03:25,400 WITH THAT AGREED UPON PLAN. 2672 02:03:25,400 --> 02:03:28,200 7 AND THE KEY ELEMENTS THAT WILL 2673 02:03:28,200 --> 02:03:30,040 BE IN THE DATA MANAGEMENT PLAN 2674 02:03:30,040 --> 02:03:32,720 WILL BE HOW WILL DATA BE 2675 02:03:32,720 --> 02:03:34,200 MANAGED? 2676 02:03:34,200 --> 02:03:36,480 BUDGETING AND REPOSITORY. 2677 02:03:36,480 --> 02:03:39,280 PLEASE PAY ATTENTION TO OUR 2678 02:03:39,280 --> 02:03:39,960 ACTIVITIES. 2679 02:03:39,960 --> 02:03:41,400 INCLUDING WHAT WE'RE DOING RIGHT 2680 02:03:41,400 --> 02:03:43,040 NOW AS WELL AS OUR WEBSITE. 2681 02:03:43,040 --> 02:03:45,120 I HOPE YOU FOUND THIS HELPFUL 2682 02:03:45,120 --> 02:03:49,880 AND I'M MORE THAN HAPPY TO HEAR 2683 02:03:49,880 --> 02:03:50,560 COMMENTS OR QUESTIONS. 2684 02:03:50,560 --> 02:03:52,480 >> THANK YOU VERY MUCH, MIKE. 2685 02:03:52,480 --> 02:03:55,000 I'M SURE THAT THERE WILL BE SOME 2686 02:03:55,000 --> 02:03:56,200 COMMENTS AND QUESTIONS. 2687 02:03:56,200 --> 02:04:03,320 SO PLEASE RAISE YOUR HANDLED. 2688 02:04:03,320 --> 02:04:05,040 -- HAND. 2689 02:04:05,040 --> 02:04:07,080 *. 2690 02:04:07,080 --> 02:04:08,640 MAYBE I'LL START. 2691 02:04:08,640 --> 02:04:10,680 I THINK WE HAVE TALKED A LOT 2692 02:04:10,680 --> 02:04:16,560 ABOUT HOW ACADEMIC INSTITUTIONS 2693 02:04:16,560 --> 02:04:17,920 INCENTIVIZE CERTAIN ACTIVITIES 2694 02:04:17,920 --> 02:04:19,680 AND I THINK THIS IS ONE OF THEM 2695 02:04:19,680 --> 02:04:21,960 AND YOU ELUDED TO THE FACT -- 2696 02:04:21,960 --> 02:04:25,360 THAT PUBLICATIONS ARE REWARDED. 2697 02:04:25,360 --> 02:04:27,480 AND THAT OUR HOPE IS THAT DATA 2698 02:04:27,480 --> 02:04:29,080 SHARING WILL AS WELL. 2699 02:04:29,080 --> 02:04:32,360 WHAT CAN YOU SAY ABOUT HOW 2700 02:04:32,360 --> 02:04:35,680 ACADEMIC INSTITUTIONS ARE 2701 02:04:35,680 --> 02:04:36,880 INCENTIVIZING THIS? 2702 02:04:36,880 --> 02:04:41,960 >> A COUPLE OF THOUGHTS. 2703 02:04:41,960 --> 02:04:47,880 WE KNOWS TO -- SOCIETIES AND JOS 2704 02:04:47,880 --> 02:04:49,720 HAVE SECTIONS. 2705 02:04:49,720 --> 02:04:51,920 7 WOULD WRITE AN ARTICLE AND IT 2706 02:04:51,920 --> 02:04:54,120 WOULD GET PEER REVIEWED BUT THAT 2707 02:04:54,120 --> 02:04:56,560 ARTICLE IS NOT ABOUT A 2708 02:04:56,560 --> 02:04:58,320 HYPOTHESIS BUT A DATA RESOURCE 2709 02:04:58,320 --> 02:05:00,160 THAT YOU HAVE MADE AVAILABLE AND 2710 02:05:00,160 --> 02:05:02,320 THEN YOU DESCRIBE WHAT THAT DATA 2711 02:05:02,320 --> 02:05:04,040 LOOKS LIKE. 2712 02:05:04,040 --> 02:05:05,880 AND HOW TO GET TO IT. 2713 02:05:05,880 --> 02:05:08,200 AND THEN HOPEFULLY YOU HAVE A 2714 02:05:08,200 --> 02:05:10,640 PROCESS IN PLACE WHEREBY YOU'RE 2715 02:05:10,640 --> 02:05:12,280 ABLE TO KEEP TRACK OF WHO'S 2716 02:05:12,280 --> 02:05:14,400 ACTUALLY LOOKING AT YOUR DATA. 2717 02:05:14,400 --> 02:05:15,840 AND THAT IS SOMETHING THAT 2718 02:05:15,840 --> 02:05:19,240 SHOULD BE REWARDED ON THE PART 2719 02:05:19,240 --> 02:05:21,000 OF ACADEMIC LEADERSHIP. 2720 02:05:21,000 --> 02:05:25,920 SECOND IDEA IS THAT DATA -- 2721 02:05:25,920 --> 02:05:28,240 LET'S SAY YOU HAVE A DATASET 2722 02:05:28,240 --> 02:05:31,840 THAT IS IN A REPOSITORY -- THAT 2723 02:05:31,840 --> 02:05:35,760 CAN HAVE A DOI -- THAT IS 2724 02:05:35,760 --> 02:05:36,760 CONNECTED TO IT. 2725 02:05:36,760 --> 02:05:40,600 JUST LIKE A PUBLICATION DOES. 2726 02:05:40,600 --> 02:05:46,240 AND THEN MANY RESEARCHERS HAVE 2727 02:05:46,240 --> 02:05:47,960 ORCHID IDs. 2728 02:05:47,960 --> 02:05:51,680 A FAIRLY EASY -- OR ACTUALLY 2729 02:05:51,680 --> 02:05:52,480 FOUR PARTS. 2730 02:05:52,480 --> 02:05:55,880 A GRANT, RESEARCHER AND DATASET 2731 02:05:55,880 --> 02:05:58,640 -- AND THEN THE USE OF THAT 2732 02:05:58,640 --> 02:06:00,520 DATASET ALL PUT TOGETHER AND ONE 2733 02:06:00,520 --> 02:06:02,560 CAN TRACK HOW DATA ARE BEING 2734 02:06:02,560 --> 02:06:02,960 USED. 2735 02:06:02,960 --> 02:06:04,560 WE WOULD HOPE THAT WE WOULD GET 2736 02:06:04,560 --> 02:06:06,960 TO THE POINT FOR EXAMPLE WHERE A 2737 02:06:06,960 --> 02:06:09,040 SCIENTIST WOULD SAY I HAVE 2738 02:06:09,040 --> 02:06:10,200 PUBLISHED CERTAIN PAPERS AND 2739 02:06:10,200 --> 02:06:12,200 SOME OF THESE PAPERS HAVE BEEN 2740 02:06:12,200 --> 02:06:14,400 HIGHLY CITED OR MAYBE INCLUDED 2741 02:06:14,400 --> 02:06:17,120 IN CLINICAL PRACTICE GUIDELINES. 2742 02:06:17,120 --> 02:06:19,000 WE COULD ALSO IMAGINE WHERE A 2743 02:06:19,000 --> 02:06:20,240 RESEARCHER WOULD SAY I HAVE DONE 2744 02:06:20,240 --> 02:06:22,440 THIS WORK. 2745 02:06:22,440 --> 02:06:25,080 IT HAS PRODUCED X DATA AND THESE 2746 02:06:25,080 --> 02:06:28,480 DATA ARE BEING USED NOT BY MY 2747 02:06:28,480 --> 02:06:30,160 TEAM BUT BY OTHER PEOPLE WHO 2748 02:06:30,160 --> 02:06:32,920 HAVE USED THOSE DATA TO COME UP 2749 02:06:32,920 --> 02:06:36,000 WITH A VARIETY OF INTERESTING 2750 02:06:36,000 --> 02:06:36,760 INSIGHTS. 2751 02:06:36,760 --> 02:06:39,880 AND THEREFORE THAT REPRESENTS A 2752 02:06:39,880 --> 02:06:41,120 CONTRIBUTION TO SCIENCE. 2753 02:06:41,120 --> 02:06:42,760 THIS IS SOMETHING THAT I THINK 2754 02:06:42,760 --> 02:06:44,640 WILL HAVE TO EVOLVE OVER TIME 2755 02:06:44,640 --> 02:06:46,760 BUT HOPEFULLY AS MORE AND MORE 2756 02:06:46,760 --> 02:06:48,840 DATA ARE BEING SHARED THIS WILL 2757 02:06:48,840 --> 02:06:51,280 BECOME -- THERE WILL BE MORE 2758 02:06:51,280 --> 02:06:52,640 THINKING ABOUT HOW DO WE MAKE 2759 02:06:52,640 --> 02:06:56,080 THIS A POSITIVE -- AND HOW DO WE 2760 02:06:56,080 --> 02:06:57,920 MAKE THIS SOMETHING THAT PEOPLE 2761 02:06:57,920 --> 02:07:00,080 WILL WANT TO DO AND PEOPLE GET 2762 02:07:00,080 --> 02:07:01,800 REWARDED FOR AS OPPOSED TO A 2763 02:07:01,800 --> 02:07:03,400 CHORE. 2764 02:07:03,400 --> 02:07:06,520 >> THANK YOU. 2765 02:07:06,520 --> 02:07:09,560 CYNTHIA MORTAN HAS A QUESTION. 2766 02:07:09,560 --> 02:07:10,320 >> HI, MIKE. 2767 02:07:10,320 --> 02:07:12,560 THANK YOU FOR THIS PRESENTATION. 2768 02:07:12,560 --> 02:07:14,360 I'M A MEMBER OF THE AMERICAN 2769 02:07:14,360 --> 02:07:16,680 SOCIETY OF HUMAN GENETICS. 2770 02:07:16,680 --> 02:07:20,200 AND THE GENETICS COMMUNITY IS 2771 02:07:20,200 --> 02:07:23,200 REALLY VERY STRONGLY BEHIND DATA 2772 02:07:23,200 --> 02:07:25,840 SHARING AS YOU PROBABLY KNOW. 2773 02:07:25,840 --> 02:07:29,120 AND THERE ARE SOME OF CONCERNS 2774 02:07:29,120 --> 02:07:30,560 ABOUT WHETHER CONGRESS MIGHT 2775 02:07:30,560 --> 02:07:33,200 STEP IN AT SOME POINT AND WEIGH 2776 02:07:33,200 --> 02:07:34,760 IN ON THIS. 2777 02:07:34,760 --> 02:07:37,200 I'M CURIOUS WHERE YOU THINK THAT 2778 02:07:37,200 --> 02:07:40,840 PULSE IS AT THIS POINT? 2779 02:07:40,840 --> 02:07:42,600 >> WE'LL HAVE TO BE CAREFUL 2780 02:07:42,600 --> 02:07:44,080 ABOUT COMMENTING ON WHAT 2781 02:07:44,080 --> 02:07:47,440 CONGRESS MAY OR MAY NOT DO. 2782 02:07:47,440 --> 02:07:50,640 I DO THINK WHAT CONGRESS HAS 2783 02:07:50,640 --> 02:07:53,000 DONE IS THEY PASSED A LAW THAT 2784 02:07:53,000 --> 02:07:56,240 SAID THAT THE DIRECTOR IS 2785 02:07:56,240 --> 02:07:57,360 AUTHORIZED TO REQUIRE DATA 2786 02:07:57,360 --> 02:07:59,440 SHARING. 2787 02:07:59,440 --> 02:08:02,080 THERE ARE -- SO NOW I'M GOING TO 2788 02:08:02,080 --> 02:08:03,400 TAKE A STEP BACK. 2789 02:08:03,400 --> 02:08:05,080 NOT MAKING ANY COMMENTS ABOUT 2790 02:08:05,080 --> 02:08:06,280 ANY LEGISLATION. 2791 02:08:06,280 --> 02:08:07,920 JUST MAKING SOME OBSERVATIONS 2792 02:08:07,920 --> 02:08:09,320 ABOUT VARIOUS THINGS THAT WE 2793 02:08:09,320 --> 02:08:12,520 HAVE HEARD. 2794 02:08:12,520 --> 02:08:14,720 IN SOME RESPECTS -- THERE IS A 2795 02:08:14,720 --> 02:08:16,720 STRONG PUSH TOWARDS SHARING 2796 02:08:16,720 --> 02:08:18,120 DATA. 2797 02:08:18,120 --> 02:08:20,000 A GOOD EXAMPLE WOULD BE THE 2798 02:08:20,000 --> 02:08:21,320 CLINICAL TRIALS. 2799 02:08:21,320 --> 02:08:24,120 SHOULD BE SHARED FOR A VARIETY 2800 02:08:24,120 --> 02:08:25,560 OF OBVIOUS REASONS. 2801 02:08:25,560 --> 02:08:27,880 FOR GENETIC DATA SOME PEOPLE ARE 2802 02:08:27,880 --> 02:08:31,480 WORRIED THAT SHARING GENETIC 2803 02:08:31,480 --> 02:08:33,400 DATA IT MAY FALL INTO THE WRONG 2804 02:08:33,400 --> 02:08:34,360 HANDS. 2805 02:08:34,360 --> 02:08:36,280 MAY GET MISS IN INTERPRETED AND 2806 02:08:36,280 --> 02:08:38,160 THAT IS SOMETHING THAT WE ALL 2807 02:08:38,160 --> 02:08:38,920 NEED TO MANAGE. 2808 02:08:38,920 --> 02:08:42,920 I ALSO THINK THAT IT'S PROBABLY 2809 02:08:42,920 --> 02:08:45,040 -- I THINK THAT IT'S ALSO 2810 02:08:45,040 --> 02:08:47,320 IMPORTANT TO CONVEY A MESSAGE 2811 02:08:47,320 --> 02:08:51,080 THAT IF WE KNOW A PERSON'S 2812 02:08:51,080 --> 02:08:52,600 GENOME WE DON'T REALLY KNOW 2813 02:08:52,600 --> 02:08:53,080 THEM. 2814 02:08:53,080 --> 02:08:58,000 THERE IS A LOT MORE TO HUMAN 2815 02:08:58,000 --> 02:09:00,360 BIOLOGY AND HUMAN HEALTH AND TO 2816 02:09:00,360 --> 02:09:02,000 HUMAN ENVIRONMENT THAN A 2817 02:09:02,000 --> 02:09:03,240 PERSON'S GENOME. 2818 02:09:03,240 --> 02:09:06,240 SO WHILE THERE ARE GREAT 2819 02:09:06,240 --> 02:09:07,880 INSIGHTS TO BE ACHIEVED BY 2820 02:09:07,880 --> 02:09:13,080 SHARING THOSE KINDS OF DATA -- 2821 02:09:13,080 --> 02:09:15,960 SOME OF THE DESCRIPTIONS OF THE 2822 02:09:15,960 --> 02:09:18,400 DANGERS ARE PROBABLY A BIT 2823 02:09:18,400 --> 02:09:21,920 BEYOND REALITY. 2824 02:09:21,920 --> 02:09:25,120 I HOPE THAT MAKES SENSE. 2825 02:09:25,120 --> 02:09:32,000 >> THERE ARE OTHER QUESTIONS? 2826 02:09:32,000 --> 02:09:36,400 >> OKAY. 2827 02:09:36,400 --> 02:09:39,240 SO ONE QUESTION -- MIKE THAT MAY 2828 02:09:39,240 --> 02:09:41,480 COME UP IS HOW THESE PLANS WILL 2829 02:09:41,480 --> 02:09:46,240 BE REVIEWED BY STAFF AND HOW 2830 02:09:46,240 --> 02:09:49,320 WE'RE GOING TO ENSURE THAT ALL 2831 02:09:49,320 --> 02:09:51,200 INSTITUTE STAFF REVIEW THEM IN A 2832 02:09:51,200 --> 02:09:53,520 SIMILAR WAY? 2833 02:09:53,520 --> 02:09:57,360 >> SO WHAT WE'RE GOING TO DOING 2834 02:09:57,360 --> 02:10:00,160 -- LARGELY FOLLOWING -- A LIST 2835 02:10:00,160 --> 02:10:02,920 OF ELEMENTS THAT WE PUT OUT WHEN 2836 02:10:02,920 --> 02:10:05,800 THE POLICY WAS RELEASED BACK IN 2837 02:10:05,800 --> 02:10:08,640 OCTOBER OF 2020. 2838 02:10:08,640 --> 02:10:11,200 THIS IS NOT A BLANK PIECE OF 2839 02:10:11,200 --> 02:10:12,280 PAPER. 2840 02:10:12,280 --> 02:10:13,920 IT ACTUALLY IS A SERIES OF 2841 02:10:13,920 --> 02:10:16,240 FAIRLY SPECIFIC QUESTIONS. 2842 02:10:16,240 --> 02:10:17,800 THE PLAN ITSELF IS GOING TO BE 2843 02:10:17,800 --> 02:10:18,560 FAIRLY SHORT. 2844 02:10:18,560 --> 02:10:20,280 I BELIEVE IT'S GOING TO BE THREE 2845 02:10:20,280 --> 02:10:21,160 PAGES OR LESS. 2846 02:10:21,160 --> 02:10:25,040 SO WE'RE NOT ASKING FOR A 20 2847 02:10:25,040 --> 02:10:28,040 PAGE -- BUT THERE ARE A NUMBER 2848 02:10:28,040 --> 02:10:30,400 OF SPECIFIC ITEMS THAT ARE 2849 02:10:30,400 --> 02:10:33,560 DESCRIBED OR THAT ARE ASKED FOR. 2850 02:10:33,560 --> 02:10:36,800 WE ARE DEVELOPING TOOLS -- FOR 2851 02:10:36,800 --> 02:10:39,880 OUR OWN STAFF TO MAKE IT -- 2852 02:10:39,880 --> 02:10:41,560 RELATIVELY EASY AND 2853 02:10:41,560 --> 02:10:42,800 STRAIGHTFORWARD FOR THEM TO 2854 02:10:42,800 --> 02:10:43,680 REVIEW THESE. 2855 02:10:43,680 --> 02:10:47,200 WE'RE ALSO VERY PLEASED TO SEE 2856 02:10:47,200 --> 02:10:49,680 WHAT IS HAPPENING IN THE 2857 02:10:49,680 --> 02:10:50,280 EXTRAMURAL COMMUNITY. 2858 02:10:50,280 --> 02:10:54,280 FOR EXAMPLE, WE KNOW THAT FACET 2859 02:10:54,280 --> 02:10:57,320 AND ORGANIZATIONS LINKED TO 2860 02:10:57,320 --> 02:10:59,880 FACET HAVE PUT TOGETHER A DATA 2861 02:10:59,880 --> 02:11:01,000 MANAGEMENT TEMPLATE. 2862 02:11:01,000 --> 02:11:03,520 I'M NOT ENDORSING IT BUT I 2863 02:11:03,520 --> 02:11:07,000 LOOKED AT IT AND IT LOOKS GOOD. 2864 02:11:07,000 --> 02:11:09,640 BASED ON THE POLICY THAT WE PUT 2865 02:11:09,640 --> 02:11:12,240 OUT BACK IN OCTOBER OF 2020. 2866 02:11:12,240 --> 02:11:14,120 7 IN FACT WHAT IS INTERESTING 2867 02:11:14,120 --> 02:11:16,440 WE'VE SEEN THERE ARE SOME 2868 02:11:16,440 --> 02:11:18,640 RESOURCES OUT THERE THAT PROVIDE 2869 02:11:18,640 --> 02:11:20,640 TEMPLATES NOT ONLY FOR THE NIH 2870 02:11:20,640 --> 02:11:22,320 DATA MANAGEMENT AND SHARING 2871 02:11:22,320 --> 02:11:25,080 POLICY BUT ALSO FOR POLICIES OF 2872 02:11:25,080 --> 02:11:28,080 A WHOLE HOST OF OTHER FUNDERS 2873 02:11:28,080 --> 02:11:36,520 AND IT'S BILL GATES AND SHOWN -N 2874 02:11:36,520 --> 02:11:37,840 AND OTHERS. 2875 02:11:37,840 --> 02:11:41,160 WE ALSO KNOW A NUMBER OF 2876 02:11:41,160 --> 02:11:43,480 LIBRARIES -- ARE ALSO DEVELOPING 2877 02:11:43,480 --> 02:11:44,680 RESOURCES AS WELL. 2878 02:11:44,680 --> 02:11:46,360 SO OUR THINKING IN TERMS OF OUR 2879 02:11:46,360 --> 02:11:49,200 STAFF IS THAT THERE WILL 2880 02:11:49,200 --> 02:11:51,000 HOPEFULLY BE A TIME BEFORE TOO 2881 02:11:51,000 --> 02:11:53,760 LONG WHEN MOST OF THESE LOOK 2882 02:11:53,760 --> 02:11:57,680 SIMILAR AND THE ELEMENTSES THAT 2883 02:11:57,680 --> 02:11:59,560 ARE REQUIRED ARE WELL DESCRIBED. 2884 02:11:59,560 --> 02:12:02,080 WE HAVE TOOLS IN PLACE AND 2885 02:12:02,080 --> 02:12:04,160 THEREFORE THE VAST MAJORITY OF 2886 02:12:04,160 --> 02:12:06,280 THESE SHOULD BE FAIRLY 2887 02:12:06,280 --> 02:12:08,480 STRAIGHTFORWARD AND EASY TO 2888 02:12:08,480 --> 02:12:10,440 APPROVE RELATIVELY QUICKLY. 2889 02:12:10,440 --> 02:12:12,400 WE ALSO THINK THAT WITH THE 2890 02:12:12,400 --> 02:12:15,080 SAMPLE PLANS WHERE YOU PUT THE 2891 02:12:15,080 --> 02:12:16,520 SAMPLE PLANS OUT THERE AND 2892 02:12:16,520 --> 02:12:17,840 ENCOURAGE PEOPLE TO LOOK AT THEM 2893 02:12:17,840 --> 02:12:19,840 AND USE THEM TO HELP THEM PUT 2894 02:12:19,840 --> 02:12:22,280 THEIR OWN PLANS TOGETHER, THAT 2895 02:12:22,280 --> 02:12:26,360 WILL ALSO MAKE IT EASIER FOR OUR 2896 02:12:26,360 --> 02:12:26,560 STAFF. 2897 02:12:26,560 --> 02:12:28,600 OUR HOPE IS THAT THE VAST 2898 02:12:28,600 --> 02:12:30,080 MAJORITY OF THE PLANS WILL GO 2899 02:12:30,080 --> 02:12:31,480 THROUGH EASILY. 2900 02:12:31,480 --> 02:12:35,440 AND THEN AS NEED BE CENTRALLY 2901 02:12:35,440 --> 02:12:37,720 WE'LL PROVIDE ADVICE FOR THOSE 2902 02:12:37,720 --> 02:12:40,840 THAT ARE TRULY DIFFICULT. 2903 02:12:40,840 --> 02:12:41,120 >> GREAT. 2904 02:12:41,120 --> 02:12:42,080 THANK YOU. 2905 02:12:42,080 --> 02:12:45,240 THAT WAS VERY INFORMATIVE. 2906 02:12:45,240 --> 02:12:48,360 ANY ADDITIONAL QUESTIONS? 2907 02:12:48,360 --> 02:12:50,160 ALL RIGHT. 2908 02:12:50,160 --> 02:12:51,600 WELL YOU'VE ANSWERED ALL OF THE 2909 02:12:51,600 --> 02:12:53,280 QUESTIONS AND IT'S CRYSTAL CLEAR 2910 02:12:53,280 --> 02:12:54,200 NOW. 2911 02:12:54,200 --> 02:12:54,840 >> THANK YOU. 2912 02:12:54,840 --> 02:12:56,880 AND PLEASE VISIT OUR WEBSITE 2913 02:12:56,880 --> 02:12:58,400 WHEN YOU HAVE A CHANCE. 2914 02:12:58,400 --> 02:12:58,960 >> GOOD. 2915 02:12:58,960 --> 02:13:00,240 THANKS, MIKE. 2916 02:13:00,240 --> 02:13:02,480 BYE-BYE. 2917 02:13:02,480 --> 02:13:03,240 ALL RIGHT. 2918 02:13:03,240 --> 02:13:07,080 SO THAT IS THE END OF OUR 2919 02:13:07,080 --> 02:13:08,280 PROGRAM TODAY. 2920 02:13:08,280 --> 02:13:09,640 TOMORROW WE WILL BE HEARING 2921 02:13:09,640 --> 02:13:11,720 ABOUT REVIEWS SO WE WILL BE 2922 02:13:11,720 --> 02:13:13,920 JOINED BY DR. BRUCE REED WHO IS 2923 02:13:13,920 --> 02:13:16,160 THE DEPUTY DIRECTOR OF THE 2924 02:13:16,160 --> 02:13:18,880 CENTER FOR SCIENTIFIC REVIEW. 2925 02:13:18,880 --> 02:13:21,560 AND DR. WAGNER MILLER WILL TALK 2926 02:13:21,560 --> 02:13:23,840 ABOUT NIDCD PEER REVIEW AND THEN 2927 02:13:23,840 --> 02:13:25,400 A SESSION WHERE WE'LL TALK ABOUT 2928 02:13:25,400 --> 02:13:26,800 THE BRAIN INITIATIVE THAT I 2929 02:13:26,800 --> 02:13:29,840 THINK WILL BE VERY INTERESTING. 2930 02:13:29,840 --> 02:13:32,640 SO ARE THERE ANY LAST MINUTE 2931 02:13:32,640 --> 02:13:36,080 COMMENTS? 2932 02:13:36,080 --> 02:13:37,520 IF NOT WE'RE ADJOURNED AND I 2933 02:13:37,520 --> 02:13:38,960 WILL SEE YOU ALL TOMORROW. 2934 02:13:38,960 --> 02:13:51,160 THANK YOU.