>>WELCOME EVERYONE TO DAY 2
OF THE NIDCD ADVISORY COUNCIL
MEETING. VERY HAPPY YOU JOINED
US TODAY. TODAY WILL BE SPENT
MOSTLY WITH REPORTS FROM THE
NIDCD, WE WILL BEGIN WITH A
REPORT ON THE BUDGET FROM OUR
CHIEF BUDGET OFFICER, MR. GARY
WILLIAMS, THEN WE WILL GO TO
REPORT OF THE DIVISION OF
SCIENTIFIC PROGRAMS BY DR.
COOPER FOLLOWED BY A REPORT FROM
THE DIVISION OF EXTRAMURAL
ACTIVITIES BY DR. WAGENAAR
MILLER. WE'LL THEN TAKE A BREAK
THEN WE HAVE ABOUT AN HOUR FOR
PRESENTATION FROM OUR STAFF ON
WHAT WE ARE DOING AT THE NIDCD
TO PROMOTE DIVERSITY AND
INCLUSIVENESS AND WE'LL WELCOME
ALL OF YOUR DISCUSSION ABOUT
THAT. SO FIRST I'LL WELCOME ERIC
WILLIAMS.
>> THANK YOU, DR. TUCCI. GOOD
MORNING, COUNCIL. CAN YOU HEAR
ME? GREAT. CAN WE GO TO THE
FIRST SLIDE PLEASE. AT THE
SEPTEMBER COUNCIL WE GAVE A I
GUESS A DRAFT OR A PLAN
MECHANISM TABLE WHERE WE
ANTICIPATE SPENDING OUR FUNDS.
THIS IS WHAT WE ACTUALLY ENDED
FY 21 WITH AND JUST A FEW THINGS
I WANT TO POINT OUT ON THIS ONE
IS THAT ADMIN SUPPLEMENTS WE
SPENT OVER 6 1/2 MILLION DOLLARS
ON ADMIN SUPPLEMENTS. NORMALLY
WE SPEND 2, MAYBE 3 MILLION 3 MILLION. THE
REASON WE SPEND SO MUCH, THERE
WERE COVID SUPPLEMENTS WE DID
ISSUE BUT ALSO KIND OF A
STRATEGIC PLAN TO FREE UP MONEY
GOING INTO THE FOLLOWING YEAR,
SO A SUPPLEMENT IS ONE YEAR
FUNDING AND IN ORDER TO SUPPORT
GRANTS BUT AT THE SAME TIME NOT
HAVING A MULTI-YEAR COMMITMENT
TO THOSE GRANTS. WE PROVIDED
SUPPLEMENTS WHILE THEY ARE
RESUBMITTED SO THIS ALLOWED US
SOME FUNDS SO THAT WE CAN GROW
IN OTHER AREAS IN FY 22 IN THE
OTHER AREAS. WE DID SPEND A LOT
IN COMPETING THIS YEAR AND A LOT
OF THAT IS ROLLING OVER TO
NON-COMPETING SO IF WE ARE ABLE
TO LOOK AT FY 22 WHICH WE ARE
NOT ALLOWED TO PRESENT YET, YOU
WILL SEE NON-COMPETING BASE HAS
GROWN QUITE A BIT. IF WE HADN'T
DONE ADMIN SUPPLEMENTS LAST YEAR
IT WOULD HAVE BEEN GREATER AND
IT WOULD HAVE BEEN RESTRICTED
WHEN WE TALK CONTINUING
RESOLUTION WE ARE CURRENTLY
UNDER. WE'LL GET INTO THAT IN A
MINUTE. ANOTHER THING I WOULD
LIKE TO POINT OUT, WE LAPSED
$4,000 THIS YEAR IN FY 21,
REALLY A GREAT EFFORT TO SPEND
OUR MONEY AND GET AS MUCH OF IT
OUT TO RESEARCH AS POSSIBLE AND
IT IS JUST A TESTAMENT TO ALL
THE GREAT WORK THAT'S BEING DONE
IN ALL THE DIFFERENT PROGRAMS
ENSURING GOOD PROJECTS TO FUND
AND THINGS THAT WE COULD EXECUTE
AND AS A RESULT THROUGH GRANTS
MANAGEMENT AND OUR ANB STAFF AND
DSP AND EVERYBODY HERE, DIR, WE
ARE ABLE TO SPEND DOWN TO JUST A
FEW THOUSAND DOLLARS. THAT WAS
A GOOD JOB. NEXT SLIDE PLEASE.
SO WHERE DID WE SPEND OUR MONEY?
HERE IS A VIEW HERE WHERE WE
SPEND OUR MONEY BY MISSION AREA.
WE HAVE LOOKED AT THIS OVER
MULTIPLE YEARS, IT DOESN'T
REALLY MOVE ALL THAT MUCH BUT IF
WE KEEP IN MIND THAT OUR BUDGET
IS UNDER 500 MILLION AND A
NORMAL RO1 IS ABOUT $500,000 SO
IF THERE IS ONE SHIFT IN ONE
GRANT IT IS ABOUT ONE-TENTH OF
ONE -- IT IS ABOUT A TENTH OF A
PERCENT SO WE WILL SEE SOME
MOVEMENT YEAR-TO-YEAR BUT IT IS
REALLY CAN BE CAUSED BY ONE
GRANT GOING FROM ONE MISSIONARY
TO ANOTHER MISSIONARY BUT MOST
PART WE STUCK TO THESE RATIOS
FOR SEVERAL YEARS. NEXT SLIDE
PLEASE. SO HERE I WANT TO
DESCRIBE CONTINUING RESOLUTION,
YOU CAN SEE THE FUNDS THAT WERE
ENACTED IN 19 AND 20 AND 21, IN
22 THERE'S NOT CONSENSUS AMONG
CONGRESS AND THE PRESIDENT ON
EXACTLY HOW MUCH MONEY WILL BE
SPENT THROUGHOUT ALL OF
GOVERNMENT SO ALL GOVERNMENT IS
CURRENTLY OPERATING IN WHAT IS
CALLED A CONTINUING RESOLUTION
AND WHAT A CONTINUING RESOLUTION
DOES IS IT SETS OUR SPENDING TO
LAST YEAR. SO FISCAL YEAR 21.
AND AS WE NOTED WE DID GROW IN A
LOT OF AREAS, THEN THERE'S
INFLATION AND THINGS LIKE THAT
SO RIGHT NOW WE ARE OPERATING
USING THE SAME FUNDING LEVEL WE
HAD LAST YEAR SO IT IS CREATING
SOME CHALLENGE FOR US BUT WE ARE
DOING A FEW WORK AROUNDS AND WE
ARE HOPEFUL THAT WE WILL HAVE AN
ENACTED BUDGET THAT HELPS US
MOVE ALONG WITH INFLATION AT
LEAST AND WE WILL JUST HAVE TO
SEE SO FOR IF PY 22 WE ARE
HOPEFULLY PLANNING, WE WERE
GOING TO DO $16 MILLION PER
COUNCIL AND WE HOPE FOR HPB SO
WE CONTINUE TO DO THE 4 MILLION
WE NORMALLY DO. DEPENDING WHERE
WE END UP WITH THE BUDGET AND
WHAT THE BUDGET LEVEL IS WE MAY
HAVE TO MAKE SOME CHANGES. WE
PRETTY MUCH COMMITTED TO THE 16
MILLION PER COUNCIL TO SUPPORT
THE PAY LINE BUT ALL THE OTHER
PROGRAMS I MEAN WE ARE GOING TO
HAVE TO SEE WHAT THAT FUNDING
LEVEL IS, MAKE SOME CHOICES. ,
I'M SORRY WE DON'T HAVE ANYTHING
TO REPORT. UNDERSTANDING RIGHT
NOW THAT WE MAY NOT HAVE A
BUDGET UNTIL MID MARCH PERHAPS
IN MAY COUNCIL WE'LL HAVE A
BETTER IDEA HOW THINGS ARE
SHAPING UP AND BE ABLE TO GIVE
YOU A BETTER ESTIMATE OF THE
PROGRAMS WE ARE STILL ABLE TO
SUPPORT. WITH THAT, IF THERE ARE
ANY QUESTIONS I'M AVAILABLE.
>> ANYONE HAVE QUESTIONS?
>> WHAT WE WILL HOPE THAT THE
CONTINUING RESOLUTION AND SOON
WE HAVE A BUDGET BY MID MARCH
HOPEFULLY. THANK YOU, ERIC. SO
NOW DR. COOPER WILL PRESENT THE
REPORT OF THE DIVISION OF
SCIENTIFIC PROGRAMS.
GOOD MORNING, AGAIN, EVERYONE.
OUR DSP REPORT TODAY WILL COVER
PRIMARILY THREE TOPICS. NEXT
SLIDE PLEASE. I'M GOING TO
INTRODUCE A NEW DSP STAFF
MEMBER. I WILL THEN HIGHLIGHT
SOME GOOD NEWS ABOUT NIH FUNDING
FOR SOME OF OUR INVESTIGATORS
AND THEN I WILL ASK NANCY
FREEMAN TO SHARE SOME
INFORMATION ABOUT WORKSHOP SHE
CO-ORGANIZED WITH THE DEPARTMENT
OF DEFENSE FOCUSED ON MODELS TO
TREAT HEARING LOSS. SO FIRST --
NEXT SLIDE PLEASE GINGER. FIRST
DIVISION OF SCIENTIFIC PROGRAMS
WELCOMED MERAV Ph.D. IN
OCTOBER LAST YEAR. PREVIOUSLY
SHE WAS AT THE NATIONAL CENTER
FOR COMPLIMENTARY AND
INTEGRATIVE HEALTH, THAT'S
NCCIH. WITH US DR. SABRI WILL
DIVIDE TIME EQUALLY BETWEEN
BRAIN INITIATIVE ACTIVITIES AND
AS WELL AS SERVING AS THE
PROGRAM DIRECTOR IS PART OF OUR
KEYNOTE SENSORY PORTFOLIO.
FOCUSING ON CENTRAL OLFACTORY
AND TASTE PROCESSING. HER AREA
OF EXPERTISE ARE IN NEUROSCIENCE
AND BRAIN IMAGING TECHNOLOGIES.
DR. SA BROADBANDRI EARNED A
MASTER OF ARTS IN ISRAEL AND A
DOCTORATE OF PHILOSOPHY IN
EXPERIMENTAL ONCOLOGY FROM
UNIVERSITY OTTAWA CANADA.
COMPLETED POST-DOCTORAL TRAINING
IN HUMAN NEUROIMAGING AT INDIANA
SCHOOL OF PREED SIN, AND AT
MEDICAL COLLEGE OF WISCONSIN IN
MILWAUKEE. BEFORE SHE CAME TO
THE NIH SHE WAS AN ASSISTANT
PROFESSOR OF NEUROLOGY AND O TO
LARYNGOLOGY UNIVERSITY OF
WISCONSIN ON NEUROAND COGNITIVE
BASIS OF ATTENTION AND
PERCEPTION. I THINK YOU CAN SEE
HOW PLEASED WE ARE THAT MERAV
AND HER EXPERTISE ARE NOW PART
OF NIDCD. PLEASE TURN ON YOUR
CAMERA AND RAISE YOUR HAND. SO
THAT THE COUNCIL MAY SEE YOU IN
PERSON. I DON'T KNOW -- MERAV,
CAN YOU SAY GOOD MORNING? I
THINK PERHAPS IT WILL SHOW YOUR
PICTURE.
>> THANK YOU, GOOD MORNING,
EVERYONE. I LOOK FORWARD TO
MEETING YOU IN PERSON.
>> THANK YOU. NEXT SLIDE PLEASE
GINGER. NOW I WANT TO HIGHLIGHT
A FEW EXAMPLES OF HOW SOMETIMES
NIDCD SCIENCE AND NIDCD
INVESTIGATORS ARE FORTUNATE
ENOUGH TO RECEIVE FUNDING FROM
OTHER PARTS OF NIH. YESTERDAY
YOU HEARD ABOUT THE NIH UNITE
PROGRAM FROM MARIE BERNARD. SO
LAST YEAR UNITE HAD TWO
INITIATIVES, TWO REQUESTS FOR
APPLICATIONS THAT I WANT TO TALK
ABOUT. THESE WERE GOING TO BE
SUPPORTED BY COMMON FUND
DOLLARS. WELL, ONE WAS A -- THE
TRANSFORMATIVE RESEARCH TO
ADDRESS HEALTH DISPARITIES AND
ADVANCE HEALTH EQUITY RESEARCH
TARGETING MINORITY SERVING
INSTITUTIONS. ONLY FEW AWARDS
WERE MADE AND APPLICATION FROM
GALLAUDET UNIVERSITY WITH FOCUS
ON DEAF, DEAF BLIND AND HARD OF
HEARING POPULATIONS WAS ONE OF
THEM. IT WAS AWARDED TO PORNA
KUSHALNAGAR, SHE BRINGS PREVIOUS
FUNDING FROM NIDCD AND
EXPERIENCE IN A NUMBER OF AREAS
THAT ARE IMPORTANT TO THE DEAF
COMMUNITY. THE OTHER
TRANSFORMATIVE RFA WAS OPEN TO
NON-MINORITY SERVING
INSTITUTIONS. AGAIN ONLY A SMALL
NUMBER WERE AWARDED. AND ONE WAS
TO AN NIDCD SUPPORTED
RESEARCHER, SUSAN EMMETT AND HER
COLLEAGUE AND IT WAS FOCUSED ON
REDUCING HEARING LOSS IN RURAL
AREAS. BOTH OF THE PIs BOTH
DR. EMMITT AND DR. BUSH ARE ENT
CLINICIAN SCIENTISTS. YOU ARE
BOTH INTERESTED IN HEALTH
DISPARITIES AND INEQUITIES. ONE
OF THEM HAS EXPERTISE IN MOBILE
HEALTH AND TELEHEALTH AND THE
OTHER HAS EXPERTISE IN RURAL
COMMUNITIES. I THINK IT GOES
WITHOUT SAYING THAT NIDCD IS SO
PLEASED TO HAVE OUR SCIENCE AND
OUR PIs PART OF THESE
IMPORTANT NIH INITIATIVES TO BE
TWO OF ONLY A FEW APPLICATIONS
TO BE SELECTED FOR THESE VERY
LONG PRESTIGIOUS AWARDS. AND TO
BE FULLY FUNDED BY THE NIH
COMMON FUND. NEXT GINGER, NEXT
SLIDE. I WANT TO NOW MENTION
THREE EXAMPLES OF OTHER PARTS OF
THE NIH THAT ARE FUNDING OUR
INVESTIGATORS AND OUR SCIENCE.
FIRST, FULLY FUNDING ONE OF OUR
GRANTS, THERE WAS AN APPLICATION
THAT YOU SEE BEFORE YOU THAT
WENT TO THE NIDCD SEPTEMBER
COUNCIL. NATIONAL INSTITUTE ON
AGING AND REALLY STRONG INTEREST
IN IT BECAUSE OF ITS FOCUS ON
PRIMARY PROGRESSIVE EVE FASCIA
AND ALZHEIMER'S DISEASE. THEY
SAID WE'LL FUND THE WHOLE THING
BUT KEEP THE GRANT AS NIDCD
GRANT BECAUSE WE KNOW YOU ARE
INTERESTED. THEN THERE WAS AN
OPPORTUNITY FOR CO-FUNDING.NA IS
WE'LL PAY A LITTLE, SOMEBODY
ELSE PAYS A LITTLE. AND THE
OFFICE OF BEHAVIORAL AND SOCIAL
SCIENCES AGREED TO FUND GIVEN
ITS FOCUS, A PORTION OF AN
ACTIVE NIDCD GRANT TO SUSAN
PRATT WHO IS AT UNIVERSITY OF
CALIFORNIA IRVINE,
IDENTIFICATION OF CO-MORBID
LANGUAGE AND READING DISORDERS
IN SPANISH ENGLISH BILINGUAL
CHILDREN. FINALLY, AN EXAMPLE OF
ADMINISTRATIVE SUPPLEMENT, THIS
IS ADDITIONAL MONEY TO AN ACTIVE
NIDCD GRANT AND THIS IS THE ONE
WE RECEIVED FROM OFFICE FOR
RESEARCH ON WOMEN'S HEALTH. THEY
HAD A SOLICITATION THAT WAS
REQUESTING RESEARCH
ADMINISTRATIVE SUPPLEMENTS FOR
RESEARCH ON SEX GENDER
INFLUENCES. SO DR. MISHRA, ONE
OF OUR GRANTEES AT UNIVERSITY OF
TEXAS RIO GRANDE VALLEY, HER
ACTIVE GRANT IS ON THE
DEVELOPMENT OF MEDIAL EFERENT
MECHANISMS IN CHILDREN. DR.
MISHRA SAW THE SOLICITATION FOR
SUPPLEMENT, SHE SUBMITTED ONE,
THE FOCUS HAD TO BE ON RELATED
TO HER PARENT GRANTS BUT ALSO A
NEW PERHAPS IDEA FOCUSED ON
RESEARCH ON SEX AND GENDER
INFLUENCES. AND ORWH SAID WE
WOULD LIKE TO GIVE YOU MORE
MONEY FOR THAT. SO IN SUM NIDCD
IS PLEASED AND GRATEFUL TO THESE
FUNDERS. OUR RESEARCH COMMUNITY
HAS BEEN ABLE TO FIND SUCCESS IN
A VARIETY OF WAYS. TO GET
RESEARCH FUNDING FOR OUR MISSION
AREAS. SO NOW I WANT TO TURN THE
MIC TO NANCY FREEMAN, PROGRAM
OFFICER IN NIDCD TO SHARE SOME
INFORMATION ABOUT A RECENT
WORKSHOP THAT SHE COORDINATED
WITH THE DEPARTMENT OF DEFENSE.
NANCY.
>> HI, THANK YOU, JUDITH.
SOMETIMES WE GIVE WORKSHOP
UPDATES AND SOMETIMES WE DON'T.
AND SOMETIMES THESE ARE IN DEPTH
PRESENTATIONS AND SOMETIMES THEY
ARE BRIEF UPDATES. TODAY IS A
BRIEF UPDATE ON A WORKSHOP THAT
WAS CALLED IMPROVING EXVIVO
MODELS TO ACT SEMIRATE THERAPIES
TO TREAT HEARING -- ACCELERATE
THERAPIES FOR HEARING LOSS. THIS
IS A JOINT WORKSHOP HELD BETWEEN
NIDCD AND THE CDMRP WHICH IS THE
CONGRESSIONALLY DIRECTED MEDICAL
RESEARCH PROGRAM AND PART OF THE
DOD. THIS WAS HELD LAST
NOVEMBER, IN 2021 AND WAS
CO-MODERATED BY DR. TIAN WANG
AND MYSELF. THE WORKSHOP OPENED
WITH BRIEF OPENING WELCOMES BY
DR. DEB TUCCI AND COLONEL SARA
BOLDMAN Ph.D., DIRECTOR OF
CDMRP. THE WORKSHOP CENTERED
AROUND TWO MAJOR TARGET AREAS.
THE FIRST WAS THE STATE OF THE
ART ORGANOIDS, THIS INCLUDED
OBVIOUSLY INNER EAR ORGANOIDS
BUT ALSO LEADING EDGE
TECHNOLOGIES THAT INCLUDED 3-D
BIOPRINTING, ARTIFICIAL
TRANSCRIPTION FACTORS AND
STANDARDIZATION AND AUTOMATION.
THE IDEA WAS TO GET THE
DISCUSSIONS TO FOCUS ON THE
CHALLENGES, THE BOTTLENECKS AND
THE POSSIBILITIES OF HOW ALL
THESE SYSTEMS MIGHT BENEFIT THE
EAR. SO THE EAR FIELD HAS AND
CONTINUES TO STRUGGLE WITH
MODELS THAT ALLOW FOR HIGHER
THROUGH PUT. BY THIS I MEAN
DRUGS, MOLECULES TO BE SCREENED
QUICKER, TO BE ABLE TO GET
DISEASE MODELING IN DIFFERENT
PLATFORMS TO BE USED QUICKER.
EVEN JUST TO UNDERSTAND NATIVE
DEVELOPMENT QUICKER. ONE EXVIVO
MODEL SYSTEM THAT CONTINUES TO
HOLD PROMISE IS THE USE OF
ORGANOIDS. SO WHAT ARE
ORGANOIDS? ORGANOIDS ARE 3-D
SELF ORGANIZING CELL STRUCTURE,
THEY CAN BE IN SUSPENSION OR
ADHERE TO MICROFABRICATED
DEVICES OR EXTRA CELLULAR
MATRICES. THE INITIAL CELL
SOURCE TO GENERATE ORGANOIDS CAN
BE DERIVED FROM PRIMARY TISSUES,
EMBRYONIC STEM CELLS OR
PROGENITORS DERIVED FROM IPSC
TECHNOLOGY. SIMPLY PUT
PROGENITORS OR IPSCs ARE
INITIATED IN A COCKTAIL USUALLY
CONTAINING MORE FOE GENERALS AND
OTHER TYPES OF SIGNALING
MOLECULES TO DRIVE THE
SELF-ASSEMBLY OF A 3-D ORGANOID.
THESE ORGANOIDS ARE CHARGED
CHARACTERED BY USUAL ASSAYS TO
DEVELOP BIOMARKERS AND
DEVELOPMENT OF CORRECTLY
SURROUNDING CELLS FOUND IN
NATURE STRUCTURE ITSELF. SINGLE
CELL RNA SEQ CAN ALSO THEN BE
USED TO DETERMINE BOTH
HOMOGENEITY AS WELL AS
HETEROGENEITY OF THE CELL
POPULATIONS OF THE FINAL
ORGANOID. THESE ORGANOIDS THEN
CAN BE USED FOR A VARIETY OF
ASSAYS AND MODELS. ONE IS TO
UNDERSTAND THE NORMAL FUNCTION
OF ORGANS AS WELL AS THE
DISORDERED FUNCTION OF ORGANS.
IT CAN BE USED AS DISEASE MODELS
SUCH AS INFECTION, MODELING
GENETIC MODELING OR TOXICITY
MODELING. AS I NOTED EARLIER IT
CAN ALSO BE USED AS HIGHER
THROUGH PUT AS A HIGHER THROUGH
PUT TO SCREEN DRUGS AND
MOLECULES AS WELL AS THE
POSSIBILITY OF HAVING A HIGHER
EFFICACY OF WEEDING OUT BAD
VERSUS GOOD COMPOUNDS. OBVIOUSLY
THE ULTIMATE GOAL IS TO HAVE
REPAIR MANY THE NATIVE BODY.
EITHER BY REPLACEMENT APPROACHES
OR ALL THE VARIATIONS ON A THEME
THAT IS DISCUSSED IN
PERSONALIZED MEDICINE. AS I
INDICATED THE SECOND TOPIC OF
THE TECHNOLOGY IS ONE EXAMPLE
WAS THE 3-D BIOPRINTING. THIS
ILLUSTRATION COMES FROM SEVERAL
YEARS AGO. BUT YOU CAN SEE
ALMOST EVERY MAJOR ORGAN SYSTEM
IN THE BODY IS REPRESENTED BY
BEING ABLE TO HAVE THESE ASPECTS
OR FULL COMPLIMENTS BEING
BIOPRINTED. WHEN THE TECHNOLOGY
FIRST CAME OUT IT WAS
HIGHLIGHTED IN THE NIH DIRECTORS
BLOG. JUST AS A COUPLE OF YEARS
AGO A PATIENT'S OWN CELLS WERE
USED TO 3-D BIOPRINT A HEART.
OBVIOUSLY CONTINUE RESEARCH TO
DETERMINE FULL FUNCTIONALITY OF
THESE ORGANS CONTINUES. SO THE
AGENDA OF THE WORKSHOP WAS
BROKEN DOWN INTO THREE SESSIONS.
THE FIRST SESSION WAS STATE OF
THE ART EAR ORGANOIDS, SURE
EVERYBODY RECOGNIZES THE NAME ON
THIS LIST. MARSHA ROCCIO ERI
HASINO STEPHAN HELLER AND
JEFFREY HOLT, THIS SESSION
COVERED COMPARATIVE STUDIES
BETWEEN ORGANOIDS DERIVED FROM
EMBRYONIC STEM CELLS AND IPSC.
IT ALSO COVERED THE LONGITUDINAL
HISTORY, THE EAR FIELD, FROM
STARTING WITH STEM CELLS ALL THE
WAY UP TO ORGANOIDS. ALSO
DISCUSSIONS ABOUT THE
POSSIBILITIES OF NON-MAMMALIAN
MODELS, AND GENERATING ORGANS
AND HOW THOSE MIGHT BE HELPFUL
IN THE COMPARATIVE ANALYSIS AS A
WHOLE. IT ALSO HIGHLIGHTED
STRUGGLES AND CHALLENGES AS BOTH
PRODUCERS OF THESE MODELS AS
WELL AS INDUCERS. BUT IT IS ALSO
OPTIMISTIC WITH DISEASE
MODELINGS OF THE CHARGE SYNDROME
BEING CURRENTLY MODELED IN HUMAN
EAR ORGANOIDS. THE SECOND
SESSION WITH ADVANCE TECHNOLOGY
SUCH AS THE 3-D BIOPRINTING THAT
I ALREADY ALLUDED TO, SPOKE TO
THE REPRODUCIBILITY AND
RELIABILITY AND IMPROVEMENT WITH
AUTOMATION AND STABILIZING
GROWTH ENVIRONMENTS. THE SESSION
ALSO INCLUDED WORK WITH
ORGANOIDS DERIVED FROM TRANSFORM
CELL LINES AND WHAT MIGHT NEED
TO BE FINE TUNED IN ORDER TO BE
ABLE TO DETERMINE WHETHER OR NOT
THESE ARE GOING TO BE A VIABLE
GOOD CELL SOURCE. .
THE FINAL SESSION AGAIN WAS
STATE OF THE ART OF ORGANOIDS
BUT THIS INCLUDED OTHER SYSTEMS.
MANY LIKELY KNOW THESE SYSTEMS
ARE MORE ADVANCED, WITH AN
EXAMPLE OF THE EYE ORGANOIDS
BEING USED SUCCESSFULLY IN
REPLACEMENT IN GRAFTING
STRATEGIES, IN LATE STAGE EYE
DISEASES. BRAIN ORGANOIDS ARE
BEING USED CURRENTLY AS DISEASE
MODELS FOR SUCH DISEASES AS
EPILEPSY AND ALZHEIMER'S. AND
FINALLY, TO ACKNOWLEDGE THE
CHIP, THE FABRICATED CHIP
TECHNOLOGY, WHERE ENTIRE
PHYSIOLOGICAL SYSTEMS ARE BEING
REPLICATED. THIS EXAMPLE COVERED
THE PULMONARY SYSTEM AND ALL OF
THE COMPLEXITIES THAT INVOLVE
PROFUSION OF BLOOD VESSELS
VASCULARIZATION, AND HOW THOSE
ARE GOING TO BE NEEDED TO BE
CONNECTED IN ORDER TO HAVE FULL
FUNCTIONING. THIS ALSO GOES TO
BEING ABLE THEN TO DAISY CHAIN
MULTIPLE ORGANS IN A SYSTEM AND
HAVE THEM ALL FUNCTIONALLY
BIOMIMIC WHAT IS HAPPENING IN
THE HUMAN. SO SOME CONCLUSIONS
OUT OF THE WORKSHOP WERE SOME OF
THESE ARE MORE RELEVANT TO THE
EAR BUT ALL OF THEM HAVE BROAD
IMPLICATION TO ALL THE SYSTEMS
ACROSS THE BOARD. BUT THERE ARE
CERTAINLY A NEED FOR GOOD CELL
SOURCES TO BE ABLE TO GENERATE
THESE ORGANOIDS. THERE IS A NEED
FOR HIGH THROUGH PUT SYSTEMS IN
GENERAL ESPECIALLY FOR THE EAR
FIELD. THERE IS A NEED FOR HUMAN
SPECIFIC PLATFORM TO POSSIBLY
BRIDGE THE GAP BETWEEN THE BENCH
AND THE ANIMAL MODELS THAT ARE
NEEDED FOR CLINICAL TRIALS
BEFORE PRE-CLINICAL TRIALS. THE
NEED FOR AUTOMATION TO REMOVE
INVESTIGATOR BIAS, TO REMOVE
ERROR AND IMPROVE
REPRODUCIBILITY. SO WITH THAT I
WANT TO THANK ALL OF OUR
PRESENTERS, NOT ONLY FOR THEIR
TIME BUT FOR THEIR EXPERTISE.
AND FOR BEING ABLE TO MAKE THIS
A REALLY INTERESTING AND
SUCCESSFUL WORKSHOP. WITH THAT I
WILL STOP AND TAKE ANY
QUESTIONS. THANK YOU FOR YOUR
TIME.
>> THANK YOU, NANCY, ARE THERE
QUESTIONS FROM THE COUNCIL?
>> THIS IS ANND GROVES, NO
QUESTION BUT A SHOUT OUT TO
NANCY AND SHANNON WHO ORGANIZED
THIS MEETING. I ATTENDED IT WITH
MEMBERS OF MY LAB, WE FOUND IT
INCREDIBLY HELPFUL AND
INTERESTING AND ILLUMINATING, IT
IS TERRIFIC, ALSO TO SEE THE
COORDINATION BETWEEN THE NIDCD
AND THE CDMRP THAT HAS ITS OWN
PROGRAM GRANT PROGRAM IN HEARING
RESTORATION. I THINK THAT IS
TERRIFIC AND I HOPE THESE EVENTS
CONTINUE TO HAPPEN IN THE
FUTURE.
>> THANK YOU, ANDY.
>> THANK YOU. WELL, IF THERE ARE
NO OTHER COMMENTS OR QUESTIONS
FOR NANCY, I THINK I WILL TURN
IT BACK OVER TO YOU, DEB AND TO
BECKY.
>> OKAY. VERY GOOD. ARE THERE
ANY QUESTIONS OR COMMENTS ABOUT
ANYTHING ELSE THAT JUDITH
PRESENTED? GIVE AN OPPORTUNITY
FOR ANY OTHER DISCUSSION? OKAY.
SO NEXT WE'LL HEAR FROM DR.
WAGENAAR MILLER, BECKY WILL
PROVIDE A REPORT FROM THE
DIVISION OF EXTRAMURAL
ACTIVITIES. BECKY, TAKE IT AWAY.
>> SO THE FIRST ITEM I'M GOING
TO ADDRESS TODAY IS COUNCIL
OPERATING PROCEDURES. THE NIH
MANUAL CHAPTER 54513 SPECIFIES
OPERATING PROCEDURES MUST
CONFORM WITH PUBLIC HEALTH
SERVICE ACT, PEER REVIEW
REGULATIONS AND NIH POLICY AND
THE OPERATING PROCEDURES ARE TO
BE REVIEWED ANNUALLY AT MEETING
OF COUNCIL. FOR NIDCD COUNCIL
WILL REVIEW THESE AT EACH
JANUARY MEETING, THIS HAPPENS
EVERY YEAR. THE COUNCIL
OPERATING PROCEDURES DOCUMENT
WAS SIGNIFICANTLY UPDATED AS YOU
SAW, STRUCTURALLY AND THERE HAVE
BEEN A FEW ACTUAL PROCEDURES
THAT CHANGED AS WELL. THIS
DOCUMENT ALREADY BEEN CLEARED BY
OFFICE OF THE DEPUTY DIRECTOR
EXTRAMURAL RESEARCH AND NIH
OFFICE EXTRAMURAL RESEARCH,
CONSISTENT WITH FEDERAL
LEGISLATION AND NIH POLICIES AND
PROCEDURERS. THE DOCUMENT WAS IN
ELECTRONIC COUNCIL BOOK AHEAD OF
THE MEETING FOR COUNCIL MEMBERS
TO REVIEW. THIS DOCUMENT IS NOW
ORGANIZED INTO THE THREE MAIN
ROLES OF COUNCIL. THE SECOND
LEVEL PEER REVIEW, NIDCD
INTRAMURAL BOARD OF SCIENTIFIC
COUNSELORS COUNCIL AND ADVICE
THAT COUNCIL PROVIDES NIDCD
DIRECTOR. THE FIRST
RESPONSIBILITY OF COUNCIL IS
SECOND LEVEL PEER REVIEW WHICH
OCCURS CLOSED SESSION OF
COUNCIL, THIS FALLS TO FOUR
CATEGORIES, THE ON BLOCK AND
SPECIAL ACTIONS THAT COUNCIL
REVIEWS, THE CONFLICT WITH
REQUEST FOR APPLICATIONS,
EXPEDITED COUNCIL REVIEW AND
DELEGATION OF AUTHORITY FROM
COUNCIL. THE ON BLOCK SPECIAL
ACTION REQUIREMENTS ARE
UNCHANGED FROM LAST YEAR, EXCEPT
FOR SLIGHT MODIFICATIONS TO
BULLET FOUR AND EIGHT SHOWN
BELOW IN THE LIGHT BLUE TEXT.
THIS SPECIFIES APPLICATIONS THAT
DO NOT REQUIRE A SPECIFIC
COUNCIL CONSIDERATION WILL BE
VOTESSED ON EN BLOC AND OUTLINES
EACH SPECIFIC SITUATION THAT
REQUIRES COUNCIL CONSIDERATIONS.
BULLET FOUR WAS MODIFIED TO
INDICATE THAT THE SPECIAL
COUNCIL REVIEW FUNDING THRESHOLD
IS SET BY NIH POLICY. PREVIOUSLY
LISTED AS JUST 1 MILLION. BULLET
8 WAS MODIFIED TO ADD LANGUAGE
THAT WE WILL ONLY BRING TO
COUNCIL FOR CONSIDERATION
APPLICATION WITH HUMAN SUBJECT
PROTECTION INCLUSION AND ANIMAL
WELFARE CONCERNS THAT FALL
WITHIN THE NIDCD PAY LINE OR
RECOMMENDED FOR SUPPORT. WITHIN
THE SECOND LEVEL PEER REVIEW
THERE'S TWO NEW SECTIONS ADDED,
THE FIRST CONFLICT OF INTEREST
WITH REQUEST FOR APPLICATION WAS
ADDED TO DETAIL HOW COUNCIL
MEMBERS CONFLICT FOR
APPLICATIONS SUBMITTED
SPECIFICALLY TO REQUEST FOR
APPLICATION OR RFA. THE SECOND
IS FOR EXPEDITED COUNCIL REVIEW,
THIS SECTION WAS ADDED TO
SPECIFY WHAT TYPES OF
APPLICATIONS COULD UNDERGO
SECOND LEVEL REVIEW BY COUNCIL
OUTSIDE OF OUR THREE NORMAL
COUNCIL MEETINGS IF NEEDED. THIS
IS NOT TO SAY NIDCD WILL USE
EXPEDITED COUNCIL, ADDED TO GIVE
FLEXIBILITY IF NEEDED, EXAMPLES
COULD INCLUDE SMALL BUSINESS
APPLICATIONS SUBMITTED FOR THE
AUGUST COUNCIL REVIEW, BECAUSE
WE DON'T HAVE AN AUGUST COUNCIL
MEETING. APPLICATIONS REQUIRE
THE AVAILABILITY OF TIME LIMITED
OR UNIQUE RESOURCES APPLICATIONS
ADMINISTRATIVELY DEFERRED OR
REREVIEWED DUE TO SUCCESSFUL
APPEAL OR APPLICATION SUBMITTED
TO RFAs. AND THE LAST
CATEGORY IN THE SECOND LEVEL
PEER REVIEW IS DELEGATION OF
AUTHORITY, THIS CATEGORY
OUTLINES THE EIGHT DIFFERENT
TYPES OF ACTIONS THAT INSTITUTE
STAFF CAN TAKE WITHOUT COUNCIL
REVIEW IN ACCORDANCE WITH NIH
GRANTS POLICY. THERE WERE MINOR
CHANGES IN THIS CATEGORY NUMBER
TWO WAS MODIFIED TO CHANGE IN
ORGANIZATION FROM TRANSFER TO
INSTITUTION THAT WAS TO BE MORE
INCLUSIVE AND MORE IN LINE WITH
NIH TERMINOLOGY AND SIX
SUPPLEMENTAL SUPPORT TO EXISTING
RESEARCH AND TRAINING AWARDS,
REMOVES REFERENCES TO A DOLLAR
NOT CAP FOR DIRECT COST FOR
SUPPLEMENTS. MANY OF THESE
ITEMS ARE SHARED WITH COUNCIL AS
PART OF THE INTERIM ACTION
REPORT PROVIDED AT EACH COUNCIL
MEETING SEE THAT IN A BIT FOR ME
THIS PAST TIME BETWEEN COUNCIL
AND THAT CONTAINS REPORTABLE
ACTIONS PERFORMED BY STAFF
BETWEEN COUNCIL MEETINGS.
THE TWO MAIN HIGH LEVEL
CATEGORIES WERE ADDED TO OUTLINE
OF COUNCIL DUTIES OUTSIDE THE
SECOND LEVEL PEER REVIEW, THESE
INCLUDE NIDCD BOARD OF
SCIENTIFIC COUNSELORS REPORT TO
COUNCIL AT SEPTEMBER MEETING,
THIS IS IS THE NORMAL MEETING
WHERE BSC REPORT IS SHARED WITH
COUNCIL MEMBER AND EXECUTIVE
CLOSED SESSION OF COUNCIL, IF
THERE WERE ANY BSCS PERFORMED
THE LAST YEAR. A SECTION WAS
ADDED ON ADVICE TO THE NIDCD
DIRECTOR, THIS OUTLINE IT IS
ROLES OF COUNCIL AND COUNCIL
APPROVAL AND AS RESOURCE FOR THE
NIDCD DIRECTOR SEEKING ADVICE
AND IF NEEDED FORMATION OF
COUNCIL WORK GROUP. THE CONCEPT
CLEARANCE RULE IS NOT NEW BUT
JUST MOVED UNDERNEATH SECTION
FOR CLARITY, COUNCIL WILL STILL
BE ASKED TO REVIEW AND PROVIDE
RECOMMENDATIONS ON CONCEPTS FOR
POTENTIAL FUNDING INITIATIVES IN
THE OPEN SESSION OF COUNCIL. WE
DON'T HAVE ANY CONCEPTS THIS
ROUND. FINALLY CATEGORY CALLED
EXCEPTIONAL CIRCUMSTANCES WAS
ADDED TO INDICATE THAT THE NIDCD
DIRECTOR MAY DEVIATE FROM THE
PROCEDURES OUTLINED PREVIOUSLY
IN UNUSUAL OR EXCEPTIONAL
CIRCUMSTANCES AS NIH CHAPTER
ALLOWS. ANY ACTION UNDER THIS
EXCEPTIONAL NATURE MUST BE
DOCUMENTED TO THE OFFICIAL
RECORD AND REPORTED TO COUNCIL
AT THE NEXT SCHEDULED MEETING.
ARE THERE ANY QUESTIONS FROM
COUNCIL MEMBERS OR COMMENTS ON
THE PROPOSED OPERATING
PROCEDURES? IF NOT CAN I GET A
MOTION TO APPROVE THE OPERATING
PROCEDURES WITH RAISE OF YOUR
DIGITAL HAND. THANK YOU. THEN IF
YOU CAN GET EVERYONE TO RAISE
YOUR HAND IF YOU CONCUR WITH
APPROVAL OF OPERATING
PROCEDURES. GREAT. THANK YOU,
EVERYONE. YOU CAN LOWER YOUR
HANDS. NOW I'LL MOVE TO THE
NIDCD TRIENNIAL INCLUSION
REPORT, I WANT TO THANK FOR THE
OUTSTANDING WORK HELPING COMPILE
THIS REPORT. NIH MANDATED TO
ENSURE THE INCLUSION OF WOMEN
AND MINORITIES IN CLINICAL
RESEARCH, NIH INCLUSION POLICY
DESIGNED TO GUARANTEE CLINICAL
TRIALS SUFFICIENTLY EXAMINE
DIFFERENTIAL EFFECTS OF GENDER
AND RACIAL AND ETHNIC GROUPS AND
THE NIH VIOLATION ACT REQUIRES
ADVISORY COUNCIL FROM EACH
INSTITUTE OR CENTER TO PREPARE A
BIANNUAL REPORT DESCRIBING
COMPLIANCE. WHEN THE 21ST
CENTURY CURE ACT WAS PASSED IT
AMENDED REQUIRED REPORTING DATA
IN THE NIH DIRECTOR REPORT FOR
REVIEW AND APPROVAL BY EACH IC
COUNCIL FROM EVERY TWO YEARS TO
EVERY THREE YEARS, AND YOU ARE
AT THAT THREE YEAR PERIOD NOW.
OFFICE OF MANAGEMENT AND BUDGET
SETS MINIMUM STANDARDS FOR RACE
AND ETHNICITY. CURRENTLY TWO OMB
DEFINED ETHNIC CATEGORIES AND
FIVE DEFINED RACIAL CATEGORIES.
INDIVIDUAL CAN IDENTIFY WITH
ETHNIC CATEGORY AND ONE OR MORE
RACIAL CATEGORIES OR CHOOSE NOT
TO DISCLOSE THIS INFORMATION AT
ALL WHICH WILL SHOW UP AS
UNKNOWN OR NOT REPORTED. TODAY
I WILL DISCUSS THE TWO MAIN DATA
CATEGORIES FOR NIDCD, THE ALL
NIDCD CLINICAL RESEARCH AND THE
ALL NIDCD PHASE 3 CLINICAL
TRIALS THAT INCLUDED INTRAMURAL
AND EXTRAMURAL PROGRAM. THIS
SLIDE SHOWS THE OUTLINE OF THE
REPORT WHICH WAS SHARED WITH
COUNCIL MEMBERS PREVIOUSLY BY
POSTENING THE ELECTRONIC COUNCIL
BOOK. INCLUSION TABLES IN THIS
REPORT GENERATED BY THE NIH
OFFICE OF EXTRAMURAL RESEARCH,
AND TABLE 2.1 HERE IS TOTAL
INCLUSION REPORT FOR THE NIH
DEFINED CLINICAL RESEARCH. EACH
INCLUSION ENROLLMENT REPORT OVER
THE IER CONTAINS INCLUSION DATA
FOR HUMAN SUBJECTS RESEARCH
COMPONENT OF PROJECT. ONE
PROJECT MIGHT HAVE MULTIPLE
IERs, AND THE COLUMN IER
WITHOUT ENROLLMENT NEEDS
INVESTIGATORS PLANNED TO RECRUIT
HUMAN SUBJECTS BUT NOT ENROLLED
IN ANY. THE TOTAL NIDCD IER
INCREASE MORE THAN 18% FROM
FISCAL YEAR 2019 TO FISCAL YEAR
2021. THIS TABLE IS ENROLLMENT
DETAIL FOR AUTISM NIH CLINICAL
SUPPORTED RESEARCH BY NIDCD
BROKEN BY SEX RACE AND
ETHNICITY. AND I KNOW THERE'S A
LOT OF DATA IN THIS TABLE SO GO
THROUGH IN MORE DETAIL THE NEXT
SEVERAL SLIDES BUT I WANT TO
POINT OUT THE ENROLLMENT DATA
COLLECTED IN 2020 WERE REPORTED
IN FISCAL YEAR 2021. IN 2020 THE
COVID-19 PANDEMIC AFFECTED MANY
CLINICAL STUDIES THE HEALTH
ENROLLING SUBJECTS ACCORDING TO
GRANTEE INSTITUTION POLICIES.
THEREFORE THE TOTAL CUMULATIVE
ENROLLMENT DECREASE FROM 140,000
TO APPROXIMATELY 76,000 BETWEEN
FISCAL YEAR 20 AND 21 WHICH WAS
A 45% DECREASE IN ENROLLMENT.
THIS DROP IN ENROLLMENT MAY NOT
BE UNIFORM ACROSS SEX GENDER
RACE OR ETHNICITY AND COULD
RESULT IN LARGER SWINGS IN THE
DATA BETWEEN YEARS. THE DATA
ARE BASED AS I SAID ON
SELF-SUPPORTING HUMAN SUBJECTS.
SOME CHOOSE NOT TO DISCLOSE SEX
OR GENDER RACE ETHNICITY, AND
THAT RESULTS IN UNKNOWN OR NOT
REPORTED DATA. THESE CHARTS HERE
SHOW THERE ARE ROUGHLY EQUAL
PERCENTAGES OF MALE AND FEMALE
PARTICIPANTS ENROLLED IN NIDCD
CLINICAL RESEARCH. IN 2019, 20
AND 21. NOW AS YOU CAN SEE FROM
THE GRAPH NEAR IN 2019 AND 2020
A SIGNIFICANT PERCENTAGE OVER
40% PARTICIPANTS DIDN'T REPORT
THEIR RACE. THE NEXT HIGHEST
GROUP PARTICIPATING WAS THE DARK
BLUE, IN THE NIDCD SUPPORTED
CLINICAL RESEARCH WAS WHITE
WHICH IS THE LIKELIHOOD OF
APPROXIMATELY 30%, THEN ASIAN
SHOWN IN ORANGE AT APPROXIMATELY
20%, BLACK AFRICAN AMERICAN
REPRESENTED 5% AND INDIVIDUALS INDIVIDUALS
IDENTIFYING AS MORE THAN ONE
RACE WAS APPROXIMATELY 2%. LESS
THAN 1% OF PARTICIPANTS IDENTIFY
AS AMERICAN INDIAN ALASKA NATIVE
OR AS NATIVE AMERICAN PACIFIC
ISLANDER. AND IN 2021 THERE'S
FEWER INDIVIDUALS THAT DIDN'T
REPORT THE RACE AND WE SEE AN
INCREASE PERCENTAGE IN EVERY
REPORTING GROUP. KEEP IN MIND
THAT THE OVERALL NUMBER IN 21
WAS DOWN SIGNIFICANTLY DUE TO
ENROLLMENT REDUCTIONS. AND
ADDITIONALLY AGGREGATE NUMBERS
FLUCTUATE AS COMPLETED GRANTS NO
LONGER REPORT ENROLLMENT NUMBERS
WHILE NEW GRANTS ARE JUST
BEGINNING TO START ENROLLMENT.
THESE CHARTS HERE DEMON
INVESTIGATE MAJORITY
PARTICIPANTS IDENTIFY
NON-HISPANIC BUT THERE WAS A
LARGE TAJ IN 2019 AND 2020 WHO
DIDN'T REPORT ETHNICITY. THEN WE
MOVE TO PHASE 3 CLINICAL TRIALS
THERE WERE NO NIDCD SUPPORTED
PHASE 3 CLINICAL TRIALS IN
FISCAL YEAR 20 OR 21, ALL DATA
IS LIMITED TO FISCAL YEAR 2019.
EXTRAMURAL PROGRAM HAD ONE PHASE
3 CLINICAL TRIAL FOCUSED ON
RECURRENT ACUTE O TIETIS MEDIA
IN CHILDREN WITH FISCAL YEAR
2019 ORIGINAL GRANT EXPLAINED
BOYS MORE FREQUENTLY AFFECTED
THAN GIRLS AND PROPOSE TO
REFLECT THAT MALE PREPONDERANCE
SUBJECT ACCRUAL PLANS WHICH IS
WHY YOU SEE HIGHER PERCENTAGE OF
MALES THAN FEMALES.
PARTICIPANTS IN THE PHASE 3
CLINICAL TRIALS 2019 WERE 56
WHITE, 33% BLACK AFRICAN
AMERICAN, 7% REPORTED MORE THAN
ONE RACE, TWO PERCENT ASIAN AND
ONE PERCENT AMERICAN INDIAN,
ALASKA NATIVE, AND ONE PERCENT
UNKNOWN OR NOT REPORTED. OF
THESE PARTICIPANTS, 88%
IDENTIFIED AS NON-HISPANIC. SO
SUMMARIZE THE REPORT THE DATA
FROM THESE PAST THREE YEARS
DIFFICULT TO INTERPRET DUE TO
LARGE PERCENTAGE OF INDIVIDUALS
NOT REPORTING SEX GENDER RACE OR
ETHNICITY AND DUE TO IMPACT OF
COVID-19 PANDEMIC. ON
RECRUITING. THE NIDCD STAFF
REMAIN DILIGENT MONITORING
ENROLLMENT PROJECTIONS AND THE
ACCRUAL PATTERNS OVER LIFE OF
THE GRANT. ADDITIONALLY STAFF
ACTIVATOR TO CLARIFY CORRECT
ACCRUAL DATA WHEN NECESSARY. THE
NIH WIDE INCLUSION DATA FOR
FISCAL YEAR 2019 TO FISCAL YEAR
2021 WILL BE AVAILABLE WHEN
FINALIZED AT THE LINK SHOWN
HERE. ANY QUESTIONS ON THIS
DATA? .
>> BECKY, THANKS FOR THE REPORT.
IF YOU LOOK FURTHER BACK IN
TIME, ARE THERE ANY TRENDS YOU
CAN DIAGNOSE? I DIDN'T SEE
ANYTHING DIFFERENTLY LOOKING
BACK FROM THE PREVIOUS THREE
YEARS BEFORE THAT. SO THAT DATA
IS CURRENTLY AVAILABLE. ON THE
LINK, 2016 TO 20818 DATA AND I
DIDN'T IDENTIFY ANYTHING
DIFFERENTLY FROM THERE. WE CAN
CERTAINLY LOOK MORE IN DEPTH IN
THAT OVER LONGER PERIOD OF
STUDY.
>> THANK YOU.
>> LAUREL.
>> HI, THANKS FOR THAT. CURIOUS
IF THERE'S ANY DISCUSSION AT NIH
ABOUT ADDING GENDER CATEGORIES
AND RIGHT NOW THERE'S JUST DID
NOT -- NOT UNKNOWN OR DID NOT
REPORT BUT SOME ARE SUBJECTS WHO
BINARY OR OTHER GENDER
IDENTIFICATION, IT IS
INTERESTING TO THINK ABOUT HOW
TO REPORT THAT.
>> I AM NOT AWARE OF ANYTHING.
THIS IS THE OMB CATEGORIES THAT
ARE UTILIZED FOR YOURS, THIS IS
OMB STANDARDS, ANYONE ELSE AWARE
OF ANY CHANGES AFOOT IN THAT?
>> I'M NOT.
>> IF YOU ARE SPEAKING I CAN'T
HEAR YOU. UNMUTED BUT UNABLE TO
HEAR ANYTHING. SO WE CAN COME
BACK TO VICKIE, DO YOU HAVE A
QUESTION?
>> I DO. T THE DATA ARE VERY
TELLING RELATIVE TO BLACK AND
BROWN PEOPLE'S PARTICIPATION IN
THIS RESEARCH AND I'M WONDERING
IF THERE ARE, THIS MAY BE
SOMETHING WE WILL GET INTO A
LITTLE LATER BUT HOW ARE WE
ENCOURAGING ACTIVE INCLUSION ON
THE PART OF THE RESEARCHERS?
>> RIGHT. WHAT I WILL SAY IS
THIS REPORT IS A SNAP SHOT OF
WHAT'S -- OCCURRED OVER THE PAST
THREE YEARS AND THESE GRANT
APPLICATIONS ARE PEER REVIEWED
AND HA SHOULD BE PART OF THE
INITIAL PEER REVIEW. WE DO ALSO
WORK WITH APPLICANTS AS I
MENTION PROGRAM STAFF DOES TO
WORK ON ENROLLMENT PROJECTIONS
AND ENSURING COMPLIANCE BE THEIR
ENROLLMENT THEY PROJECTED BUT
I'M NOT SURE -- MAYBE JUDITH OR
SOMEONE IN HER SHOP CAN SPEAK
MORE TO WHAT PROGRAM ACTIVELY
DOES WITH WORKING WITH FUNDED
INVESTIGATORS TO INCREASE
DIVERSITY ENROLL PARTICIPANTS.
>> AS BECKY SAID, THIS IS
REQUIRED AND SUBMITTED AT THE
YEARLY PROGRESS REPORT AND WE AS
PROGRAM OFFICERS REVIEW THE
SCIENCE AS WELL AS THE PROGRESS.
ALSO IF THE NUMBERS ARE REALLY
DOWN, I FOR ONE CONTACT THE
INVESTIGATOR AND SAY SO WHAT ARE
YOU DOING, HOW ARE YOU GOING TO
EXPAND YOUR OUTREACH BECAUSE YOU
REALLY -- YOUR NUMBERS ARE
BEHIND. I WOULD SAY FOR THE LAST
TWO YEARS EVERYBODY IS HAVING
TROUBLE BECAUSE CLINICS AND LABS
ARE CLOSED AND SO I WOULDN'T BE
SURPRISED IF OUR NUMBERS ARE
JUST ALL OVER THE PLACE AND
REALLY DOWN. NIH IS TALKING
ABOUT IS THERE A WAY TO ADD
TEETH RIGHT NOW AS YOU SAID,
VICKIE, WE ENCOURAGE OUR
INVESTIGATORS WE DON'T REQUIRE,
IT WOULD BE HARD TO SAY WE
REQUIRE -- BUT THERE ARE
GUIDELINES ABOUT HOW TO
DETERMINE THE INVOLVEMENT. I
THINK WE HAVE ALL BEEN TO REVIEW
MEETINGS WHERE REVIEWERS TALK
ABOUT OUTREACH AND THE
COMPOSITION AND DIVERSITY OF THE
POPULATION WHETHER IT IS
APPROPRIATE OR NOT APPROPRIATE.
>> SAY JUST A COUPLE OF THINGS,
BECKY, ONE IS THIS IS A TOPIC OF
MUCH DISCUSSION, ACROSS THE NIH,
WE ENGAGE EVERYBODY IN CLINICAL
TRIALS AND AS PART OF ADDRESSING
COVID THERE WAS A MAJOR EFFORT
CALLED SEAL THAT WAS STOOD UP
WITH THE LEADERSHIP OF ELISEO
PEREZ STABLE AND GARY GIBBONS TO
TAKE A CLOSE LOOK AT THIS,
THERE'S ALSO A LOT OF WORK ON
HOW WE BETTER ENGAGE COMMUNITIES
IN RESEARCH BOTH IN PREPARING
FOR THE RESEARCH AND ASKING
SPECIFIC RESEARCH QUESTIONS THAT
ARE IMPORTANT TO THE COMMUNITIES
AND ENGAGING THEM IN
PARTICIPATING IN CLINICAL
TRIALS. THE OTHER THING I WILL
SAY IS THAT THERE ARE
REQUIREMENTS FOR SPECIFIC
REPORTING ONLY FOR PHASE 3
CLINICAL TRIALS AT THE NIH SO WE
ARE CURRENTLY LOOKING AT WITH
THE REGULATIONS AND REQUIREMENTS
ARE. WE KNOW THAT EVERYBODY
INVESTIGATOR WHO SUBMITS A
CLINICAL TRIAL HAS AN ENROLLMENT
TABLE SO I THINK WHAT JUDITH IS
TALKING ABOUT IS MAKING SURE
THAT THE INVESTIGATORS ADHERE TO
THEIR ENROLLMENT TABLE SO WHAT
DID THEY PLAN TO DO AND WHAT ARE
THEY ACTUALLY DOING AND IF THEY
ARE NOT ABLE TO RECRUIT, THE WAY
THEIR ENROLLMENT TABLE INDICATES
WHAT ARE THEY DOING ABOUT IT AND
CURRENTLY WE LOOKING AT WHAT
KIND OF TEETH WE CAN PUT INTO
THAT IMPLEMENTATION. SO MANY,
MANY, MANY ISSUES, ARE OF
CONCERN HERE AND ARE ACTIVELY
BEING DISCUSSED. SO THANK YOU
FOR THE QUESTION.
>> THANK YOU.
>> DID YOU HAVE YOUR MICROPHONE
WORKING YET?
>> I THINK SO. CAN YOU HEAR ME?
I DID SAY IN THE CHAT I THINK IT
IS AT LEAST ENCOURAGING ALTHOUGH
IT MAY NOT BE SUSTAINED THAT
THERE DOES LOOK LIKE THERE IS
INCREASE IN PERCENTAGE OF PEOPLE
WHOLE ARE BLACK FROM ABOUT 5% TO
10%. SO ANYTHING IT LOOKS
POSITIVE, I ALSO THINK SOME OF
THE NEW INITIATIVES TO REACH OUT
TO INVESTIGATORS AND MORE IN
AREAS THAT ARE NOT RECEIVING AS
MUCH FUNDING AND UNIVERSITIES
THAT DON'T USUALLY RECEIVE AS
MUCH FUNDING, IS GOING TO BE
HELPFUL. IT IS NOT A RELUCTANCE
OF BLACK AND BROWN PEOPLE TO
PARTICIPATE IN CLINICAL TRIALS,
I KNOW IN OUR OWN CLINICAL TRIAL
BECAUSE WE ARE IN BALTIMORE, IS
OUR ENROLLMENT IS ALMOST EXACTLY
50% BLACK BUT THAT REFLECTS
BALTIMORE SO AND I KNOW MANY OF
THE UNIVERSITIES THAT ARE
GETTING A LOT OF NIH DOLLARS ARE
NOT AS LUCKY AS WE ARE TO BE IN
SUCH A DIVERSE NEIGHBORHOOD. SO
I REALLY AM VERY POSITIVE ABOUT
NIH'S EFFORTS TO FUND STUDIES IN
SMALLER UNIVERSITIES THAT DON'T
TYPICALLY GET FUNDING. A LOT OF
PEOPLE UNIVERSITIES IN THE SOUTH
AND OTHER AREAS THAT MAY HAVE
DIVERSE POPULATIONS.
>> THANK YOU. IF THERE ARE NO
OTHER QUESTIONS CAN I HAVE A
MOTION TO ACCEPT THE REPORT?
THANK YOU. EMILY. COUNCIL
MEMBERS CAN RAISE THEIR VIRTUAL
HAND TO VOTE TO ACCEPT THE
REPORT. THANK YOU SO MUCH, YOU
CAN LOWER YOUR HANDS. THEN JUST
TO MOVE INTERIM ACTIONS WE
TALKED ABOUT OUR OPERATING
PROCEDURES, SO AS REMINDER THESE
WERE THE ACTIONS STAFF TAKE
WITHOUT COUNCIL REVIEW IN
ACCORDANCE WITH THE NIH GRANTS
POLICY, AND A SPECIFIED IN THE
COUNCIL OPERATING PROCEDURES.
THESE ARE THE REPORTABLE ACTIONS
PERFORMED BY STAFF SINCE OUR
LAST COUNCIL MEETING. AND ANY
CHANGES IN FISCAL YEAR ARE
LIMITED AND YOU SEE MUCH LARGER
LIST OF THESE. SO THERE HAVE
BEEN FIVE CHANGESES ONE
INSTITUTION ONE CHANGE PI AND WE
HAVE FUNDED 36 SUPPLEMENTS AND
ISSUED FOUR CHILD CARE
SUPPLEMENTS SINCE YOUR LAST
MEETING. THEN TO CONCLUDE TODAY
I WANT TO BELIEFLY HIGHLIGHT A
FEW NIH POLICIES NOTICES
PUBLISHED SINCE SEPTEMBER
MEETING. SO FIRST NO
DISOD-22-044 PURPOSE OF REVIEW
AND THE PURPOSE IS REMINDER
SECURITY AND CONFIDENTIALITY OF
NIH PEER REVIEW, GOVERNMENT
SYSTEMS, CONFIDENTIALITY
REQUIREMENTS OF THE PEER REVIEW
CERTIFICATIONS THAT ARE NEEDED
AND POSSIBLE ACTIONS AND
CONSEQUENCES FOR VIOLATIONS OF
THESE RULES, I ENCOURAGE
EVERYONE TO LOOK AT THAT NOTICE.
NOTICE OD 22-046 PROVIDE
GUIDANCE FOR APPLICANTS
REGARDING COVID-19 IMPACTS, THIS
NOTICE EXTENDS EARLIER GUIDANCE
PROVIDED APPLICANTS FOR THE
AUGUST JANUARY OR AUGUST OCTOBER
22 COUNCIL ROUND BEGINNING WITH
THE JANUARY 25 RECEIPT DATES
COUPLE OF DAYS AGO. THIS NOTICE
OUTLINES THE GUIDANCE FOR
APPLICANTS AND REVIEWERS,
INCLUDING THAT REVIEWERS WILL
CONTINUE TO RECEIVE INSTRUCTIONS
TO ASSUME THAT ISSUES STEMMING
FROM THE PANDEMIC WILL BE
RESOLVED AND SHOULDN'T IMPACT
THE SCORES OF THE APPLICANTS,
THE APPLICATIONS SHOULDN'T
INCLUDE CONTINGENCY OR RECOVERY
PLANS FOR PROBLEMS RESULTING
FROM THE PANDEMIC BUT IF
APPLICANTS WANT TO ADDRESS ANY
EFFECTS DUE TO PANDEMIC SUCH AS
PRODUCTIVITY, THEY ARE
ENCOURAGED TO DO SO IN THEIR
PERSONAL STATEMENT IN THE
BIOSKETCH. I ALSO WANT TO BRING
TO YOUR ATTENTION NIH ISSUED NEW
RESOURCES FOR IMPLEMENTING THE
NEW DATA MANAGEMENT AND SHARING
POLICY, THIS WILL WILL BE
EFFECTIVE NEXT YEAR IN JANUARY
25, 2023. TO ENSURE COMPLIANCE
BE NEW POLICY NIH OFFICE OF
SCIENCE POLICY RELEASED NEW SET
OF FREQUENTLY ASKED QUESTIONS.
AND NIH IS ALSO REQUESTING
PUBLIC COMMENT ON THE DRAFT
RESPONSIBLE MANAGEMENT SHARING
OF AMERICAN INDIAN ALASKA NATIVE
PARTICIPANT DATA AND RESPONSES
CAN BE SUBMITTED UNTIL MARCH 28
FOR THAT. FINALLY I WANT TO
THANK THE STAFF AND DEA FOR
THEIR HARD WORK MANAGING REVIEW
GRANT APPLICATIONS MANAGEMENT OF
COUNCIL AND COMMITTEES AND
AWARDING THE GRANTS AND
MONITORING FOR COMPLIANCE.
THANKS. .
>> THANK YOU, BECKY. I ADD MY
THANKS TO YOUR STAFF AS WELL. SO
WE WILL TAKE A SHORT BREAK NOW
AND WE WILL COME BACK AT 11
O'CLOCK. AND HAVE OUR DIVERSITY
AND INCLUSIVENESS EFFORTS REPORT
AT THAT TIME. .
>> WELCOME BACK FROM
THE BREAK. NOW, DR.
JUDITH COOPER AND DR. ELYSSA
MONZACK WILL PRESENT EXTRAMURAL
AND INTRAMURAL PERSPECTIVES ON
NIDCD DIVERSITY AND
INCLUSIVENESS EFFORTS. AFTER
THEIR REMARKS A PANEL INCLUDING
DR. BECKY WAGENAAR MILLER MS.
JOANNE AND DR. ALBERTO RIVERA
RENTAS WILL STAND BY FOR ANY
QUESTIONS YOU HAVE. THANKS, JEW
DI.
>> GOOD MORNING, AND THANKS,
DEB. TODAY AS THE SLIDE SAYS WE
WANT TO SHARE WITH YOU SOME
PROGRESS AND SOME PLANS RELATED
TO THE EXCELLENT RECOMMENDATIONS
OF THE DIVERSITY REPORT THAT WAS
CREATED AND APPROVED BY YOU, THE
COUNCIL. I'M HERE REPRESENTING
EFFORTS OF MANY IN NIDCD WHO ARE
RESPONSIBLE FOR THE PROGRESS WE
HAVE MADE AND A WORD OF THANKS
GOES HERE BEFORE I START TO
SUSAN SULLIVAN WHO HELPED CREATE
THIS PRESENTATION WITH ME AND TO
CATHY ROW WHO HELPED MAKE THE
SLIDES LIGHT YEARS MORE
INTERESTING VISUALLY. NEXT
SLIDE. HERE IS WHAT WE HAVE
PLANNED. FIRST A LITTLE
BACKGROUND. THEN REVIEW OF
PREVIOUS EXTRAMURAL DIVERSITY
EFFORTS. THEN I'LL MOVE ON TO
SOME NEW EXCITING ACTIVITIES
MANY OF WHICH WERE SPURRED BY
RENALES THE COUNCIL. -- BY
RECOMMENDATION THE COUNCIL. WE
RECOGNIZE ATTENTION TO DIVERSITY
ISSUES MUST INVOLVE NOT ONLY
EXTRAMURAL COMMUNITY, BUT OUR
DIVISION OF INTRAMURAL RESEARCH
AS WELL AS STAFF WITHIN NIDCD.
SO THAT IS WHAT I'LL -- WHEN I
WILL TURN IT OVER TO ELYSSA
MONZACK, DEPUTY SCIENTIFIC
DIRECTOR WITHIN OUR INTRAMURAL
PROGRAM AND SHE WILL SHARE NIDCD
INTRAMURAL DIVERSITY EFFORTS AS
WELL AS EFFORTS ON THE NIDCD
DIVERSITY WORKING GROUP. AS DEB
SAYS, PLEASE SAY YOUR QUESTIONS
UNTIL ELYSS AND I ARE FINISHED,
AS WE HAVE THIS PANEL OF
INDIVIDUALS WHO HAVE MANY OF
THEM HAVE BEEN INSTRUMENTAL IN
THE PROGRESS THAT WE HAVE MADE.
AND THEY REALLY ARE IN THE BEST
POSITION TO ANSWER YOUR
QUESTIONS. OKAY. SO LET'S
BEGIN. GINGER NEXT SLIDE PLEASE.
FIRST REPORT OF THE COUNCIL HAD
ITS ROOTS IN A DISCUSSION LED BY
LISA GOFMAN AND FAN GANG ZENG ON
THIS TOPIC AT THE SEPTEMBER 2020
COUNCIL. THAT WAS FOLLOWED BY
REQUEST FROM DR. TUCCI AND
ANNOUNCED AT THE JANUARY 21
COUNCIL MEETING TO ESTABLISH A
WORKING GROUP. AND ADDITIONAL
WORKING GROUP OF THE COUNCIL AND
ADDITIONAL ADVISORS TO ADDRESS
WHAT CAN NIDCD DO. THE CHARGE,
ADVISE NIDCD HOW TO IMPROVE
DIVERSITY IN OUR WORK FORCE AND
IN OUR SCIENCE. YOU WILL RECALL
THIS WORKING GROUP WAS LED BY
LISA AND FAN GANG ZENG AND THE
REST OF THE COMMITTEE IS LIFTED
ON THE SLIDE SLIDE. AFTER INTENSIVE
EFFORT LISA AND FAN GANG
PRESENTED THE REPORT TO YOU AT
MAY 2021 ADVISORY COUNCIL
MEETING. AND YOU APPROVED. THEIR
FINAL REPORT WAS PRESENTED TO
NIDCD IN THE SUMMER OF LAST
YEAR. THERE WERE IN THE REPORT
PRIMARILY FIVE AREAS OF
RECOMMENDATIONS, THESE ARE NOTED
ON THE SLIDE. GRANT FUNDING,
WORK FORCE, RESEARCH CONTENT,
PIPELINE, MENTORING AND
INFORMATION. SO AFTER THAT, WHAT
HAPPENED? WELL IT WAS TIME TO
ROLL UP SLEEVES AND IMPLEMENT
RECOMMENDATIONS. SO NIDCD
INTERNAL COMMITTEE WAS FORMED
AND OUR MEMBERS ARE HERE ON THE
SLIDE. WE ALL WERE INVOLVED IN
LEADING AND CREATING AND
IMPLEMENTING ACTIVITIES THAT I
WILL BE SHARING, ACTIVITIES THAT
WE FELT ADDRESSED THE IDEAS IN
THE REPORT. FIRST I WANT TO
REMIND YOU OF A FEW EXAMPLES OF
DIVERSITY ACTIVITIES THAT WERE
IN EXISTENCE PRIOR TO THE
REPORT. THESE CONTINUE. FIRST
DIVERSITY SUPPLEMENTS. NIDCD HAS
BEEN A LONG STANDING PARTICIPANT
AND SUPPORTER OF THIS PROGRAM
WHICH FROM SLIDES FUNDING TO OUR
PIs, TO BRING ON TO THEIR
ACTIVE GRANTS INDIVIDUALS FROM
DIVERSE BACKGROUNDS. I'M GOING
TO SHARE WHAT IS NEW ABOUT THAT
IN A BIT. AND THEN THERE IS THE
F 31 DIVERSITY FELLOWSHIP FOR
DIVERSE CANDIDATES WORKING
TOWARD THEIR DOCTORATES. THERE
IS A MOSAIC AND THE BRAIN
DIVERSITY K99 R 00s WHICH
PROVIDE AWARDS TO POST DOCS FROM
DIVERSE BACKGROUNDS. NIDCD HAS A
LONG TRIED TO INCLUDE DIVERSE
PERSPECTIVES FROM BOTH LEVELS OF
PEER REVIEW. THAT'S THE INITIAL
REVIEW GROUP, SPECIAL EMPHASIS
PANELS AND THE COUNCIL.
THOSE EFFORTS HAVE BEEN ENHANCED
RECENTLY BY NEW TRAINING FOR
SCIENTIFIC REVIEW OFFICERS TO
PROMOTE EQUITABLE AND INCLUSIVE
PRACTICES. A FINAL PREVIOUS
ONGOING EFFORT WAS OUR SUPPORT
OF TRAINEES FROM DIVERSE
BACKGROUNDS AT CONFERENCES,
AGAIN THERE'S NEW STEPS THERE,
RELATED AND I WILL BE GETTING TO
THAT. SO I WANT TO MOVE NOW TO
SOME NEW EXCITING ACTIONS THAT
WERE MOTIVATED OR RECOMMENDED BY
COUNCIL REPORT. ALL FOCUSED ON
OUR EXTRAMURAL COMMUNITY. WE PUT
THESE NEW ACTIONS INTO FIVE
CATEGORIES. THAT IN PART MIRROR
THE FIVE AREAS OF THE REPORT.
ASSISTING POTENTIAL GRANTEES,
MENTORING AND ENHANCING THE
PIPELINE, REACHING OUT AND
SHARING INFORMATION, EXPANDING
NIDCD OBTAINING DIVERSE
PERSPECTIVES AND RESEARCH
DIRECTIONS AND OPPORTUNITIES A
MORE DIVERSE LANDSCAPE. SO WHAT
NEW APPROACH HAVE WE IMPLEMENTED
TO ASSIST POTENTIAL GRANTEE?
NEXT SLIDE GINGER. THESE THREE
EXAMPLES DIRECTLY RESPOND TO THE
WORKING GROUP REPORT. FIRST, WE
HAVE ADDED TO THE COUNCIL
SECTION OF OUR WEB SITES
INFORMATION FOR ALL, ALLOWING
AND ENCOURAGING WRITING OF
LETTERS OF INFORMATION, TO THE
INSTITUTE STAFF AND THE COUNCIL.
TO ASSIST IN OUR COUNCIL
DELIBERATIONS. PREVIOUSLY,
KNOWLEDGE ABOUT THAT OPTION WAS
LIMITED. AND BASED ON
EXPERIENCE, COLLEAGUES,
INTERACTION WITH YOUR PROGRAM
OFFICER, AND MAYBE NOT SO
FAMILIAR TO THOSE PIs AND
INSTITUTIONS WITH LIMITED NIH
EXPERIENCE. NOW, THE OPTION IS
CLEAR, FAIR AND OPEN TO ALL.
SECOND, TO AID THOSE RESEARCHERS
WITH LIMITED INSTITUTIONAL
SUPPORT AND GUIDANCE WE HAVE
ADDED A NEW LINK ON OUR WEBSITE,
HIGHLIGHTING SUCCESSFUL
APPLICATION EXAMPLES WHICH
REPORTEDLY IS A VERY POPULAR
RESOURCE AROUND THE NIH. WE
NEEDED TO POINT TO OTHER
INSTITUTES IN THIS INTERIM
PERIOD AS WE ATTACK OUR THIRD
NEW APPROACH. WE ARE CREATING
OUR OWN REPOSITORY OF
APPLICATIONS AND SUMMARY
STATEMENTS, FROM OUR OWN PIs.
THIS IS IN PROGRESS AS WE DEAL
WITH MYRIAD PERMISSIONS,
REDACTING COMPLIANCE ISSUES,
LEGAL ISSUES, LEGAL APPROVALS,
ET CETERA. BUT WE ARE HOPEFUL
THAT THIS WILL BE READY IN THE
MONTHS AHEAD. NOW I WANT TO
TALK ABOUT EFFORTS MAIN TAG
EXPANDINGTY VERSE COMMUNITY AS
WE FOCUS ON MENTORING THE
PIPELINE. FIRST SEVERAL
COUNCILS AGO WE BROUGHT A NEW
CONCEPT CLEARANCE TO YOU FOR
APPROVAL WHICH WILL ALLOW US TO
PURSUE A NUMBER OF ACTIVITIES
FOCUSED ON DIVERSITY EQUITY AND
INCLUSION. AND WHEN THOSE ARE
READY TO GO WE WILL BE TELLING
ABOUT THOSE. SECOND, WE HAVE
ISSUED TWO NEW FUNDING
OPPORTUNITY ANNOUNCEMENTS, WHICH
REQUEST APPLICATIONS FOCUSED ON
NET PORKING OPPORTUNITIES FOR
MENTORING RESEARCH EXPERIENCE
FOR DIVERSE GROUPS. THIRD, AS
DR. TUCCI MENTIONED YESTERDAY,
WE HAVE TWO WEBINARS FOCUSED ON
THOSE DIVERSITY R 25
INITIATIVES, ONE IS AVAILABLE AT
ARCHIVE AND ONE IS SCHEDULED FOR
NEXT MONTH AND WILL BE ARCHIVED.
THIS IS TO GET THE WORD OUT,
CLARIFY AND EXPLAIN PLUS TO
APLOW QUESTIONS. WE DID HAVE A
WEBINAR RECENTLY THAT WAS
RELATED TO ANOTHER R 25 PROGRAM
AND IT WAS A HUGE SUCCESS. THESE
HAVE A GREAT ADVANTAGE BY
PROVIDING INFORMATION TO THOSE
WHO CAN'T ATTEND WEREN'T AWARE
OR WHO NEED INFORMATION AT LATER
DATE. FOR OUR FEBRUARY 1 COMING
UP, THE EXTRAMURAL OPPORTUNITIES
TO ADVANCE DIVERSITY FOR
RESEARCH WORK FORCE WE HAVE A
LIVE REGISTRATION LINK ON OUR
WEBSITE AND ENCOURAGE ALL OF YOU
P INTERESTED TO PLEASE SIGN UP.
THE FOURTH AS I MENTION WE LONG
PROVIDED TRAVEL SUPPORT TO
CONFERENCES AND ENCOURAGE
DIVERSITY EFFORTS BUT WE HAVE
BEEFED UP OUR WORDING, OUR
GUIDANCE ON THE WEBSITE TO
INCLUDE ENCOURAGEMENT OF
SUPPLEMENTAL REQUESTS POST AWARD
FOR ADDITIONAL TRAINEE TRAVEL
AWARDS TO EXPAND THE DIVERSITY
OF CONFERENCES. WE HAVE ALSO
TRIED TO HIGHLIGHT SOME NEW NIH
EXPECTATIONS REGARDING ATTENTION
TO SOME VERY SPECIFIC DIVERSITY
ISSUES THAT MUST APPEAR IN ALL
CONFERENCE GRANT APPLICATIONS.
LET'S GO TO THE NEXT SLIDE
PLEASE. WE HAVE BEEN INVOLVED
AND SUPPORTIVE OF THE DIVERSITY
SUPPLEMENT PROGRAM FOR QUITE A
WHILE BUT RECENTLY WE DECIDED WE
NEEDED TO DO MORE MORE TO
INCREASE AWARENESS OF THE
PROGRAM. SO WE SENT OUT AN EMAIL
TO ALL OF OUR FUNDED
INVESTIGATORS, SOME OF YOU
PROBABLY GOT THAT EMAIL. WE
SHARED INFORMATION ABOUT THE
PROGRAM, WE ENCOURAGED
APPLICATIONS, WE TALKED ABOUT
OUR COMMITMENT TO THE PROGRAM.
DID IT HELP? TAKE A LOOK AT THIS
NEXT SLIDE. GINGER. .
LOOK AT THE NUMBERS COMPARED TO
PREVIOUS YEARS. AND SEE HOW OUR
SUPPORT HAS GROWN WE PLAN TO
CONTINUE TO PERIODICALLY CONTACT
OUR FUNDED PIs AND ENCOURAGE
APPLICATIONS IN ORDER TO
CONTINUE TO INCREASE AWARENESS
OF THE PROGRAM. NEXT SLIDE,
GINGER. RELATED TO SUPPLEMENTS
WE DECIDED TO ALSO HIGHLIGHT
THESE RECIPIENTS BY A SPECIFIC
SPOT ON OUR WEBSITE WE CALL
DIVERSITY SCHOLARS. GINGER, IF
YOU CAN CLICK ON THE LINK THIS
IS ON OUR WEBSITE AND WE HAVE
INVITED EVERYONE FROM 2021
SUPPLEMENTS TO SHARE THEIR
INFORMATION ABILITY CAREER
LEVEL, RESEARCH SUMMARIES AND TO
GIVE FOLKS AN IDEA OF -- THE
SORTS OF RESEARCH BEING
SUPPORTED. SO THIS IS NOT JUST
TO I THINK YOU MIGHT BE AT THE
END. YOU CAN GO BACK TO OUR
SLIDE. SO FOR RESEARCH SCHOLARS
IT IS NOT TO RECOGNIZE THEM, BUT
THE PLAN IS TO HOLD A WEBINAR
FOR THEM TO SAY HERE IS WHAT IS
NEXT FOR YOU. FROM NIDCD. THERE
IS THAT IN THE WORKS AND ALSO
GOING TO BE NIH WIDE MENTORING
OPPORTUNITY TO HIGHLIGHT SO WE
HAVE TWO MENTORING PLANS IF YOU
WILL FOR INDIVIDUALS BEYOND LABS
WHERE THEY ARE BUT WE AS NIDCD
WILL BE OFFERING TO THOSE FOLKS.
SO WE ARE ADDRESSING EARLY
PIPELINE OPPORTUNITIES VIA THE
CREATION OF A PILOT SUMMER
PROGRAM FOR HIGH SCHOOL AND
UNDERGRADUATE STUDENTS TO PAIR
UP THIS COMING SUMMER WITH
FUNDED NIDCD RESEARCHERS. AND
THEN FINALLY, REGARDING
INCREASING AWARENESS OF WHO
POTENTIALLY IS IN THE COMPLINE,
WE ARE NOW RECEIVING UNDERSTOOD
REPRESENTED MINORITY STATUS FOR
ALL OUR APPLICANTS. NOW I WANT
THE ADDRESS NEW ACTIVITIES
REGARDING HOW TO EXPAND EFFORTS
TO REACH OUT AND SHARE
INFORMATION IN ORDER TO BROADEN
EXTRAMURAL COMMUNITY. FIRST WE
PREVIOUSLY STARTED NIDCD NEWS
LETTER, EMAILED THREE TIMES A
YEAR SCONE AFTER COUNCIL
MEETINGS. WHICH WE SEND TO ALL
NIDCD GRANTEES. NOW WE MAKE
CERTAIN TO INCLUDE HISTORICALLY
BLACK COLLEGES AND UNIVERSITIES,
MSI, MINORITY SERVING
INSTITUTIONS, AS WELL AS
INDIVIDUALS WHO SUBMITTED GRANTS
BUT UNSUCCESSFUL WITHIN THE LAST
TWO YEARS. SUCH INFORMATION
EXPANDS AUDIENCE THAT BENEFIT
FOR SUCH INFORMATION IN THOSE
NEWS LETTERS AS FUNDING
OPPORTUNITIES INSTITUTE
PRIORITIES AND OTHER ISSUES.
SECOND, HOW ABOUT SCIENTIFIC
CONFERENCE?
ATTENDANCE IS TYPICAL FOR NIDCD
STAFF, WE HAVE DONE THAT FOR
MANY YEARS BUT NOW WE ENCOURAGE
ATTENDANCE AT MORE DIVERSE
CONFERENCES TO HAVE A PRESENCE
AND/OR TO PRESENT IF THE
OPPORTUNITY IS AVAILABLE. SUCH
CONFERENCE IS NOTED ON THE
SLIDE. IN FACT TWO STAFF MEMBERS
MONZACK AND ELANA WILL ATTEND
THE NATIONAL BLACK ASSOCIATION
FOR SPEECH LANGUAGE AND HEARING
AT ITS MEETING IN MARCH. THE
THIRD THING I WANT TO MENTION IS
A FINAL REACH OUT AND SHARE
EFFORT. AND THAT IS THE EXCITING
NIDCD WEB PAGE FOCUSED ON
DIVERSITY PROGRAMS. THIS WEB
PAGE IT IS LITERALLY HOT OFF THE
PRESS, WENT LIVE JUST LAST WEEK,
IS A ONE STOP SHOPPING
SUGGESTION DIRECTLY FROM THE
DIVERSITY REPORT AND IT IS MADE
POSSIBLE IN LARGE PART THROUGH
LEADERSHIP OF JOANNE KAREN WHO
YOU LEARNED YESTERDAY IS NEW
DIRECTOR OF OFFICE FOR HEALTH
COMMUNICATION PUBLIC LIAISON.
GINGER, PLEASE CLICK ON THE
LINK, BUILDING A DIVERSE
SCIENTIFIC WORK FORCE TO GIVE
YOU AN IDEA AND SCROLL DOWN A
LITTLE BIT, YOU CAN SEE THAT
THERE ARE DIFFERENT SECTIONS
THERE'S TRAINING OPPORTUNITIES
ON THE CAMPUS, THERE'S
INSTITUTIONAL AND EXTRAMURAL
LABS, THEN THERE'S A SECTION
CALLED FUNDING ANNOUNCEMENTS AND
RESEARCH SUPPLEMENTS THEN YOU
HIT DIVERSITY SCHOLARS. IF
SOMEONE ONLY MAKES IT TO MAYBE
THE WEB PAGE THE NIDCD MAIN WEB
PAGE THERE ARE LINKS TO VARIETY
OF OTHER RESEARCH FUNDING OR
FUNDING OPPORTUNITIES. THANK
YOU, GINGER. FUNDING OR
RESEARCH, IT WILL TAKE YOU THERE
IS A LINK EVEN IN THOSE PLACES
TO GET YOU POINTED TO THIS
WEALTH OF INFORMATION. GINGER,
WE CAN GO BACK -- OR WE CAN
LEAVE IT ON THIS, THAT'S FINE.
SO WHAT IS OUR NEXT STEP ON THIS
WEBSITE? OBVIOUSLY WE WANT TO
GET THE WORD OUT BECAUSE THIS IS
JUST INVALUABLE INFORMATION,
PROBABLY WILL BE DOING SOME SORT
OF BLITZ IN ADVERTISING SO WE
CAN INCREASE AWARENESS. I THINK
THIS IS JUST GOING TO BE -- IT
WAS A WONDERFUL IDEA AND NOW
IT'S BEEN IMPLEMENTED. AS YOU
KNOW WE HAVE BEEN STRIVING TO
ADVERTISE AND HIRE A CHIEF
DIVERSITY COORDINATOR FOR NIDCD.
I'M NOT GOING TO GO INTO REASONS
FOR DELAY WHICH WERE ABOVE AND
BEYOND NIDCD BUT WE ARE NEARING
THE TIME OF POSTING AN
ADVERTISEMENT AND I ENCOURAGE
YOU TO SHARE THIS OPPORTUNITY
WITH INDIVIDUALS THAT YOU THINK
MIGHT BE INTERESTED. WE ENVISION
THIS PERSON WILL IMPLEMENT
ADDITIONAL RECOMMENDATIONS FROM
THE DIVERSITY REPORT.
AS WELL AS FORIATE NEW
ACTIVITIES. -- INITIATE NEW
ACTIVITIES AND PROVIDE
ASSISTANCE ACROSS THE INSTITUTE
AND EXPAND OUR OUTREACH TO
MINORITY SERVING INSTITUTIONS.
REST ASSURED WE WILL KEEP YOU
INFORMED WHEN THE POSITION IS
ADVERTISED, SO YOU CAN HELP
SPREAD THE WORD. NEXT SLIDE.
FINALLY, BEFORE I TURN THE
PRESENTATION OVER TO ELYSSA, LET
ME HIGHLIGHT A FEW OF THE NEW
ACTIVITIES WE ARE DOING TO
ENCOURAGE AND SUPPORT A MORE
DIVERSE LANDSCAPE IN OUR
RESEARCH. ON THIS SLIDE YOU SEE
RECENT EFFORTS IN THIS AREA.
THREE FUNDING OPPORTUNITY
ANNOUNCEMENTS LED BY NIDCD
STAFF, THE NIDCD HEALTH
DISPARITIES AND INEQUITIES
RESEARCH WHICH WAS LED BY KELLY
KING, ENHANCING NIDCD EXTRAMURAL
WORK FORCE DIVERSITY THROUGH
RESEARCH EXPERIENCES AND THE
MENTORING NETWORKS TO ENHANCE
DIVERSITY AND NIDCD EXTRAMURAL
RESEARCH WORK FORCE. THESE ARE
OUR NEW R 25 WHICH DR. TUCCI
READ THROUGH YESTERDAY BOTH LED
BY ALBERTO RIVERA RENTAS. IN
ADDITION, NIDCD HAS RECOGNIZED
THAT THERE ARE OPPORTUNITIES
BEING LED BY OTHER PARTS OF NIH
AND WE JOIN SOME OF THOSE. THE
FIRST ONE LISTED IS
UNDERSTANDING AND ADDRESSING
IMPACT OF STRUCTURAL RACISM AND
DISCRIMINATION ON MINORITY
HEALTH AND HEALTH DISPARITIES. I
MENTION THAT IN THE CLOSED
SESSION YESTERDAY. THEN WE HAVE
THE TRANSFORMATIVE ONE WHICH I
ALSO MENTIONED, HEALTH DISPARITY
RESEARCH AT MINORITY SERVING
INSTITUTIONS. THEN
ADMINISTRATIVE SUPPLEMENTS FOR
SMALL BUSINESS TO PROMOTE
DIVERSITY IN RESEARCH AND
DEVELOPMENT, FINALLY, ONE OF THE
ACTIVITIES ENTITLED DIVERSITY
SPECIALIZED PRE-DOCTORAL TO
POST-DOCTORAL ADVANCEMENT IN
NEUROSCIENCE. WE HAVE EVERY
EXPECTATION THAT MORE RESEARCH
OPPORTUNITIES AND ANNOUNCEMENTS
WILL BE OFFERED IN THE COMING
MONTHS BOTH FROM US LED BY NIDCD
AND FROM NIH. WE WILL KEEP YOU
POSTED ON THOSE. AN EXAMPLE OF
THE CONTINUING ACTIVITY WITHIN
THE LAST FEW WEEKS WE HAVE
LEARNED ABOUT AND SIGNED ON TO
TWO MORE NEW INITIATIVES SOON TO
BE PUB ESTABLISHED NIH LEADING
IN THIS AREA. SO NOW WE WILL
TURN FOCUS FROM EXTRAMURAL TO
GIVE AN IDEA WHAT IS HAPPENING
IN NIDCD DIVISION OF INTRAMURAL
RESEARCH. AND ALSO SOME OVERALL
NIDCD STAFF ACTIVITIES THAT ARE
RELATED TO DIVERSITY EQUITY AND
INCLUSION. ELYSSA HAS BEEN A
LEADER IN ALL THESE ACTIVITIES
AND SHE'S GOING TO WALK YOU
THROUGH SEVERAL SLIDES AND THEN
WE WILL OF MOVE TO OUR PANEL WHO
ARE READY TO ADDRESS RESPOND TO
THE QUESTIONS. ELYSSA.
>> GREAT. THANK YOU SO MUCH,
JUDITH. THANK YOU TO THE COUNCIL
FOR HAVING ME HERE TODAY. GINGER
YOU CAN GO TO NEXT SLIDE. I'M
GOING TO START BY SAYING THERE'S
A LOT OF DIVERSITY EFFORTS
HAPPENING SPECIFICALLY WITHIN
NIDCD AND ALSO WITHIN THE NIH SO
I'M ONLY GOING TO TOUCH ON THE
ONES THAT ARE HAPPENING WITHIN
NIDCD I KNOW BECKY BEAR HARD
TALKED ABOUT SOME HAPPENING
ACROSS NIH AND IT IS A LOT. SO
GOING TO TRY TO BREAK DOWN IN A
WAY THAT IS FAIRLY ORGANIZED, I
HOPE. SO I'M GOING TO START
WITH THE INTRAMURAL SIDE
SPECIFICALLY. SO WE HAVE A
DIVERSITY FOCUSED COMMITTEE AND
INTRAMURAL AND WE CALL THAT THE
DIR COMMITTEE OR DIVERSITY
EQUITY AND INCLUSION. THIS IS A
LIST OF EVERYONE ON THE
COMMITTEE, THIS IS INCREDIBLY
ENTHUSIASTIC GROUP AND THIS LIST
INCLUDES TRAINEES, CONTRACTORS
STAFF SCIENTISTS, PIs,
CLINICIANS AND ADMINISTRATORS.
I AM CHAIR OF THIS GROUP, AS
JUDITH MENTIONED I LEAD OTHER
GROUPS AS WELL WITHIN NIDCD SO
THAT HELPS US TO OPTIMIZE
EFFORTS AND AVOID REDUNDANCY
ACROSS THESE GROUPS. NEXT SLIDE
PLEASE. THIS INTRAMURAL
COMMITTEE, WE FORMED IN JULY
2020, WE ARE ADVISORY TO NIDCD
SCIENTIFIC DIRECTOR AND WE ARE
TASKED WITH FINDING WAYS TO
IMPROVE DIVERSITY AND INCLUSION,
WE TRY TO BE SPECIFIC TO
INTRAMURAL WORK FORCE. AS I AM
ABOUT TO SHOW YOU WITH EFFORTS,
WE FOCUS PRIMARILY ON RECRUITING
EFFORTS FOR TRAINEES BECAUSE
THERE IS TURN OVER IN THE
TRAINEE POPULATION SO THERE'S
CONSTANT OPPORTUNITIES TO TRY TO
INCREASE THE DIVERSITY OF OUR
TRAINING WORK FORCE. ONE FIRST
ACCOMPLISHMENT HERE IS THE
INTRAMURAL GROUP CREATED THE
NIDCD RECRUITING GUIDE. THIS IS
BASED ON A PRESENTATION CALLED
BEYOND CV GIVEN BY DR. ANNA AT
THE NIH. WHAT WE WANTED TO DO IS
PROVIDE CONCRETE TOOLS FOR
PEOPLE TO BE ABLE TO MITIGATE
BIAS THROUGHOUT THE RECRUITING
PROCESS, SO WE GIVE TOOLS FOR
PEOPLE TO CREATE A LOW JARGON
GENDER NEUTRAL JOB
ADVERTISEMENT, WE PROVIDE
SPECIFIC RESOURCES FOR WHERE YOU
MIGHT ADVERTISE, THE JOB AD, WE
PROVIDE STANDARDIZED RUBRICS AS
TOOLS THAT YOU CAN USE TO
STANDARDIZE INTERVIEW PROCESS,
AS WELL AS TIPS FOR WHEN YOU ARE
SELECTING CANDIDATES. AND BEST
PRACTICES. SO WE ARE PROUD OF
THIS. SO WE DESIGNED IT FOR
INTRAMURAL BUT LATER THERE WAS
INTEREST IN OTHER DIVISIONS AS
WELL, I WILL TALK ABOUT THAT
LATER. THERE WAS A
RECOMMENDATION FROM THIS
COMMITTEE TO ADOPT A MINIMUM
RELOCATION ALLOWANCE FOR
TRAININGS AT ALL LEVELS AND THAT
REALLY MEANS THERE'S A
STANDARDIZED AMOUNT OF MONEY
PROVIDE TO TRAINEES TO RELOCATE
TO THE D.C. AREA BECAUSE WE
DON'T WANT THE COST OF MOVING TO
BE THE BARRIER FOR TRAINEES TO
COME HERE TO BE PART OF TRAINING
PROGRAM. WE ALSO HAVE AN
INITIATIVE THAT WAS SPEARHEAD
HEADED BY DR. MELANIE BARZACK A
GROUP OF SEASONED MENTORS
IDENTIFIED A DIVERSE SCHOOL OF
APPLICANTS WHO APPLIED TO THE
CENTRAL NIH DATABASE FOR THE NIH
POST BAC BACCALAUREATE PROGRAM. THE
IDEA IS THIS GROUP WOULD BE ABLE
TO IDENTIFY REALLY IMPRESSIVE
CANDIDATES AND CULTIVATE A
DIVERSE GROUP OF APPLICATIONS TO
PROVIDE TO OUR NIDCD INTRAMURAL
LABS TO CONSIDER FOR THEIR
RECRUITING POST BACK CANDIDATES,
SO WE TAKE THE WORK OUT OF IT
FOR THE PI BECAUSE WE HAVE
ALREADY VETTED THESE AMAZING
DIVERSE GROUP OF IMPRESSIVE
APPLICANTS. THEN WE ALLOW PIs
TO DECIDE WHO THEY WOULD LIKE
THE HIRE IF ANYONE, IF THEY ARE
RECRUITING THIS YEAR. WITH THE
HOPE THAT THEY WOULD HIRE A MORE
DIVERSE GROUP OF POST BACs TO
NIDCD THAN THEY WOULD HAVE IF
THEY OTHERWISE CASUALLY PERUSED
THE DATABASE ON THEIR OWN. THEN
WE ARE ALSO WORKING TO INCREASE
PARTICIPATION IN THE DIVERSITY
FOCUSED SUMMER SUB PROGRAMS
OFFERED BY THE NIH OFFICE OF
INTRAMURAL TRAINING AND
EDUCATION. AND THIS ALIGNED
DIRECTLY WITH ONE OF THE
RECOMMENDATIONS THAT WAS MADE BY
THE COUNCIL WORKING GROUP. SO IN
ORDER TO TRY TO DO THIS THE
SCIENTIFIC DIRECTOR HAS OFFERED
TO FUND TO ALL SUMMER PROGRAM
THROUGH PARTICIPANTS INCLUDING
PARTICIPANTS IN THESE SUMMER SUB
PROGRAMS. SO HOPEFULLY THAT WILL
REMOVE THE BARRIER FOR ANY LAB
THAT UNDERSTOOD IN HOSTING
SUMMER INTERNS. NEXT SLIDE. I
WANT TO INCLUDE THIS SLIDE IN
RESPONSE TO ONE OF THE
RECOMMENDATIONS FROM THE COUNCIL
WORKING GROUP ABOUT PROVIDING
COMMUNITY NETWORKING SUPPORT FOR
OUR TRAINEES SO I WANTED TO
HIGHLIGHT WE ALSO HAVE A
COMMITTEE THAT IS CALLED THE
NIDCD FELLOWS COMMITTEE. SO THIS
IS A GROUP INTRAMURAL TRAINEES
INCREDIBLY ENTHUSIASTIC WHO GET
TOGETHER TO BUILD COMMUNITY
AMONG THEMSELVES AND ADVOCATE
FOR POSITIVE INSTITUTIONAL
CHANGE. THEY FORMED A
PARTNERSHIP WITH THE NCCIH IDEA
GROUP. SO THIS IS A DIVERSITY
FOCUS TRAINING GROUP WITHIN THE
NATIONAL CENTER FOR
COMPLIMENTARY AND INTEGRATIVE
HEALTH. SO THIS ALLOWS TRAINEES
FROM TWO SMALL INSTITUTES TO
PULL EFFORTS LEARN FROM EACH
OTHER, AND ALLOWS OUR TRAINEES
TO HAVE THE OPPORTUNITY TO LEARN
ABOUT AND ATTEND DIVERSITY
FOCUSED JOURNAL CLUBS AND
SEMINARS AND SYNERGY WITH AGAIN
WITH ANOTHER SMALL NIH
INSTITUTE. I ALSO WANTED TO
HIGHLIGHT THE SUPPORT THAT OUR
TRAINEES GET FROM THE NIH OFFICE
OF INTRAMURAL TRAINING AND
EDUCATION OITE. WHEN OUR
TRAINEES GET HERE THEY HAVE AN
ORIENTATION WHERE THEY RECEIVE
INFORMATION A LOT OF INFORMATION
ABOUT THE PROGRAMS THAT OITE
OFFERS. THEY HAVE SPONSORED AND
OTHER LOCAL AFFINITY GROUPS OPEN
TO ALL NIH TRAINEES THAT OFFER
REGULAR OPPORTUNITIES FOR
NETWORKING AND SUPPORT SO THERE
ARE A LOT OF AREAS WITH TRAINEES
GET SUPPORT WITHIN NIDCD THROUGH
OTHER SMALL INSTITUTES
ESSENTIALLY THROUGH OITE. THERE
IS A LOT THERE. THEY RECEIVE
DAILY EMAILS FROM OITE WITH
DIFFERENT PROGRAMS THEY HAVE
ACCESS TO. SO NOW I WANT TO
MOVE AWAY FROM THE INTRAMURAL
SPECIFIC COMMITTEE INTO THE
NIDCD WIDE DIVERSITY WORKING
GROUP. SO THIS IS A WORKING
GROUP THAT I CO-CHAIR WITH MARK
LUCANO AND CATHY, EXECUTIVE
SECRETARY. THIS IS PAST AND
PRESENT SINCE THE GROUP WAS
FORMED IN JANUARY, 2021. NEXT
SLIDE. SO THERE IS A LOT ON THIS
SLIDE. I WILL START WITH SAYING
THE MAJOR OBJECTIVE OF THIS
GROUP IS PROPOSING ACTION ITEMS
THAT SHOWCASE INCREASE DIVERSITY
AT ALL LEVELS WITHIN NIDCD. AND
IMPLEMENT OPPORTUNITIES TO
INCREASE INCLUSION EQUITY AND
RESPECT. THIS GROUP IS MUCH
LARGER AND MORE STRUCTURED THAN
THE INTRAMURAL GROUP AND SO WHAT
WE DID IN THE BEGINNING WAS TO
ORGANIZE AROUND FIVE DIFFERENT
THEMES SO THERE ARE FIVE
DIFFERENT SUBCOMMITTEES THAT ARE
PART OF THIS OVERALL WORKING
GROUP. SO IN THE GREEN ON THE
LEFT-HAND SIDE YOU CAN SEE FIVE
DIFFERENT THEMES THAT OUR
SUBCOMMITTEES FORMED AROUND. ONE
THEME THAT WE CHOSE NOT TO FORM
A SUBCOMMITTEE AROUND WAS
RECOMMENDATIONS IN THE
EXTRAMURAL SPACE. SO EVERYTHING
THAT JUDITH PRESENTED TO YOU, WE
KNEW RECOMMENDATIONS WERE
COMING, FROM THE WORKING GROUP
ON DIVERSITY FROM COUNCIL, SO WE
CHOSE TO FOCUS ON THE REMAINING
FIVE AREAS. SO YOU CAN SEE THOSE
ARE RECRUITING, CONTINUED
TRAINING AND EDUCATION, EQUITY
AND INCLUSION, EDUCATION
OUTREACH AND COMMUNICATION, AND
ACCOUNTABILITY. SO THE
RECRUITING SUBCOMMITTEE THEY
HAVE RECOMMENDATIONS SO THEY
WERE EXCITED ABOUT THE NIDCD
RECRUITING GUIDE THAT HAD BEEN
DEVELOPED BY THE INTRAMURAL
GROUP. THEY WANTED US TO BE ABLE
TO USE IT FOR ANY NIDCD
DIVISION. SO THEY RECOMMENDED
THAT NIDCD RECRUITING GUIDE BE
USED FOR ANY POSITION WITHIN
NIDCD. SO IN ORDER TO MAKE THAT
HAPPEN, WE COORDINATED WITH THE
NIDCD COMMUNICATION OFFICE, TO
TAKE THAT GUIDE AND STANDARDIZE
IT SO THAT THE CONTACTS WERE
GENERALIZABLE TO THE ENTIRE
INSTITUTE. AND THEN ALSO TO POST
ON OUR INTERNET SO THAT IS
AVAILABLE FOR ANYONE WHO WOULD
LIKE TO USE IT AND WE RECOMMEND
THAT EVERYONE USE IT WHEN
RECRUITING FOR A NEW POSITION.
THEN THE RECRUITING SUBCOMMITTEE
ALIGNED ONE OF THE
RECOMMENDATIONS FROM THE COUNCIL
WORKING GROUP ON DIVERSITY WHICH
WAS TO INCREASE DIVERSITY IN OUR
TRAINING POPULATION. SO ONE OF
THE WAYS IN WHICH THIS GROUP
THOUGHT WE COULD START WAS BY
HAVING A PUBLIC NIDCD WEB PAGE
THAT SHOWCASED IN ONE -- ONLY
ONE PLACE DIVERSITY FOCUS NIH
TRAINING PROGRAMS. SO THAT
WEBSITE IS NOW LIVE AND PART OF
THE WEBSITE THAT JUDITH WAS JUST
DESCRIBING. SO THESE THINGS HAVE
BEEN ACCOMPLISHED AND THOSE ARE
GREAT. ANOTHER RECOMMENDATION
FROM THIS SUBCOMMITTEE WAS TO
FORM SEARCH COMMITTEES FOR ALL
EXTERNALLY ADVERTISED POSITIONS
THAT ARE TITLE 42G, GS 14 AND
15. SO FOR EVERYONE HERE WHO IS
NOT AN EXPERT ON APPOINTMENT
MECHANISMS AT NIH TITLE 42G IS A
COMMON APPOINTMENT MECHANISM FOR
STAFF SCIENTISTS AND GS 14 AND
GS 15 POSITIONS ARE THE TOP TWO
GRADES OF THE FEDERAL WAGE GRADE
SYSTEM SO WHEN PEOPLE ARE
RECRUITING FOR POSITIONS AT THIS
LEVEL THEY CAN OPT TO HAVE A
SEARCH COMMITTEE OR NOT SO THIS
CAN -- THIS SUBCOMMITTEE
RECOMMENDED THAT A SEARCH
COMMITTEE BE FORMALIZED FOR
EVERY POSITION AT THIS LEVEL.
THAT RECOMMENDATION WAS EMBRACED
BY NIDCD LEADERSHIP AND THE
IMPLEMENTATION COMMITTEE. THE
CONTINUED TRAINING AND EDUCATION
SUBCOMMITTEE STARTED BY
DEVELOPING A LIST OF NIH
TRAININGS THAT WERE RELATED TO
DIVERSITY EQUITY AND INCLUSION
AND ACCESSIBILITY AND SO THEY
USE THAT TO BOTH IDENTIFY
OPPORTUNITIES FOR NIDCD STAFF TO
TAKE THOSE TRAININGS. BUT ALSO
TO IDENTIFY GAP AREAS TO SEE
WHICH TRAININGS WERE NOT OFFERED
BY NIH. ONE OF THE GAP AREAS
THAT WAS IDENTIFIED BY THE
SUBCOMMITTEE WAS TRAININGS AND
STRUCTURAL RACISM. AND SO
BECAUSE OF THAT IDENTIFICATION,
THE SUBCOMMITTEE ARRANGED FOR
THE RACIAL EQUITY INSTITUTE TO
PRESENT THEIR GROUND WATER
TRAINING WHICH IS A STRUCTURAL
RACISM TRAINING AND THAT IS
OFFERED NEXT MONTH AND AVAILABLE
TO ANYONE AT NIDCD WHO WOULD
LIKE THE TAKE IT. NEXT ARE
EQUITY AND INCLUSION
SUBCOMMITTEE, THEY STARTED BY
CONDUCTING AN NIDCD POLL SURVEY
FOCUSED ON DIVERSITY EQUITY
INCLUSION AND ACCESSIBILITY AND
THEY LAUNCHED THAT IN OCTOBER
2021. SO THEY ARE DRAFTED A
REPORT THE LARGER WORKING GROUP
IS EDITING AND WE WILL SHARE
THOSE RESULTS AND THOSE WILL
ALSO LAY THE GROUND WORK AND
INFORM THE NEXT STEPS IN OUR
DIVERSITY STRATEGY. WITHIN
NIDCD. THE EDUCATION OUTREACH
AND COMMUNICATION SUBCOMMITTEE
STARTED BY CURATING A LIST OF
EXISTING COMMUNICATION CHANNELS
TO INTERNAL AND EXTERNAL
STAKEHOLDERS. SO PREVIOUSLY WE
HAD A NUMBER OF COMMUNICATION
CHANNELS THAT WE USED WHEN
CONDUCTING OUTREACH BUT WE
HADN'T HAD A SINGLE COHESIVE
LIST OF ALL THESE CHANNELS IN
ONE PLACE. THIS IS REALLY AGAIN
FOUNDATIONAL AND CAN BE UTILIZED
BY THE INCOMING NIDCD CHIEF
DIVERSITY OFFICER. HERE IT SAYS
DIVERSITY COORDINATOR WHERE WE
ARE USING THOSE TERMS
INTERCHANGEABLY UNTIL ADDITION
IS FORMALIZED. SO THAT GIVES THE
FUTURE CHIEF DIVERSITY OFFICER
THE OPPORTUNITY TO HIT GROUND
RUNNING, KNOWING HOW THEY HAVE
COMMUNICATE -- CAN COMMUNICATE
THROUGH ALL CHANNELS WE HAVE
AVAILABLE AT ONCE. THEN
FINALLY, WE HAVE OUR
ACCOUNTABILITY SUBCOMMITTEE. SO
SOME OF THE DISCUSSIONS WE HAD
WERE HOW WE CAN HOLD PEOPLE
ACCOUNTABLE TO EMBRACING THE
PRINCIPLES THAT ARE ESPOUSED BY
THIS WORKING GROUP TO INCREASE
DIVERSITY AND INCLUSION EFFORTS.
SO SOME OF THOSE DISCUSSIONS
FOCUSED AROUND PERFORMANCE
PLANS. SO CURRENTLY THERE IS NEW
LANGUAGE THAT HAS RECENTLY COME
DOWN FROM DEPARTMENT OF HEALTH
AND HUMAN SERVICES THAT WILL BE
EMPLOYED ACROSS NIH WHERE THERE
IS NEW CRITICAL ELEMENT FOCUSED
ON DIVERSITY EQUITY INCLUSION
ACCESSIBILITY AND THE
ACCOUNTABILITY SUBCOMMITTEE WILL
HELP INCORPORATE THAT LANGUAGE
INTO THE -- FOR THE NEW ELEMENT
INTO EVERYONE'S PLANS. BUT ALSO
RECOGNIZING THAT WE AS A WORKING
GROUP CAN MAKE AS MANY
RECOMMENDATIONS AS WE WANT BUT
UNLESS THEY ARE ACTUALLY PEOPLE
ARE HELD ACCOUNTABLE FOR MAKING
SURE THEY COME TO FRUITION, THEN
IT WON'T HAVE ANY MAJOR IMPACT
SO THE ACCOUNTABILITY
SUBCOMMITTEE ALSO STRATEGIZES
ACCOUNTABILITY MEASURES WITH ALL
OTHER SUBCOMMITTEES OF THE NIDCD
DIVERSITY WORKING GROUP. OKAY.
SO WITH THAT I JUST WANTED TO
END AND I WANT TO SAY ALL THESE
RECOMMENDATIONS I HAVE GIVEN A
LOT OF RECOMMENDATIONS AND
ACCOMPLISHMENTS, BUT ALL OF THE
RECOMMENDATIONS WERE VETTED BY
THE NIDCD IMPLEMENTATION
SUBCOMMITTEE THAT JUDITH
MENTIONED EARLIER. SO WE WANTED
TO THANK THE IMPLEMENTATION
COMMITTEE FOR SUPPORTING THE
EFFORTS. THEY HAVE SUPPORTED
EVERYTHING WE HAVE PROPOSED SO
THEY ARE REVIEWING A
RECOMMENDATIONS, PROVIDE SUPPORT
AS WE NEED IT, AND WE HAVE FOUND
THEM NIDCD LEADERSHIP AS A WHOLE
TO BE TREMENDOUSLY SUPPORTIVE
EVERYTHING WE HAVE DONE. SO WITH
THAT WE'LL BE HAPPY TO TAKE
QUESTIONS. SO WE NEED PANEL
MEMBERS TO TURN ON THEIR
CAMERAS. BECKY AND JOANNE.
ALBERTO. ELYS SARKS IS ON THERE.
COUPLE OF QUESTIONS, CYNTHIA CI
SEE YOUR HAND AND THEN RUTH ANN
MAYBE.
>> HI. SO I -- OF LATE BEEN BUSY
WORKING ON THE COMPETITIVE
RENEWAL FOR T 32 GENETICS AT
HARVARD. AN EMAIL CAME ACROSS
FROM ENGLAND, I HAVE A PART TIME
JOB THERE, IT WAS CALLED MAKING
RESEARCH MORE INCLUSIVE. I
THOUGHT TO MYSELF, WE ARE REALLY
FOCUSED A LOT ON TRAINING
FACULTY ABOUT DIVERSITY
INCLUSION ET CETERA. WHAT ABOUT
THE TRAINEES IN OUR LABS? MOST
ARE NOT DIVERSE TRAINEES. AND
SHOULD WE BE HELD ACCOUNTABLE
FOR BEING SURE THEY GET
INFORMATION ABOUT HOW TO GO
FORWARD AS SCIENTIST AND MAKING
THEIR WORK AS INCLUSIVE AS
POSSIBLE. SO THE EMAIL THAT CAME
OUT FROM THE NIHR PROVIDES
SUPPORT TO ENHANCE KNOWLEDGE OF
INCLUSIVE RESEARCH SO LIKE A
FREE eLEARNING MODULE. I SORT
OF STARTED THINKING, MAYBE THEY
ARE SORT OF NOT TARGETED IN OUR
APPROACH. SO I THINK I'M GOING
TO -- I WOULDN'T MIND SEEING
THAT ADDED TO LIKE THE T 32
INSTRUCTIONS THAT WHAT ARE YOU
DOING TO TRAIN YOUR TRAINEES
ABOUT THE IMPORTANCE OF THIS.
>> ANY COMMENTS FROM OUR PANEL?
>> I IF I MAY, JUDITH. SO THE T
32, THE ANNOUNCEMENT IS CLEAR
THAT THE APPLICATIONS HAVE TO
INCLUDE A PLAN FOR THE
RECRUITMENT OF PEOPLE FROM
UNDER-REPRESENTED DIVERSE
GROUPS. THAT'S PART OF THE
APPLICATION, OBVIOUSLY THE PI
CAN INCLUDE ANY TOPICS INTERNAL
TRAIN THE TRAINEES IN ANY KIND
OF SCIENCE RESEARCH RELATED BUT
ALSO IN DIVERSITY. RIGHT NOW THE
PROGRAM WE HAVE AS PROGRAM
OFFICER IS THAT THE PLAN THAT
YOU GUYS INCLUDE IN THE T 32
APPLICATION IS NOT -- IS REVIEW
BUT NOT PART OF THE SCORING
SYSTEM. SO YOU EITHER SAY
(INAUDIBLE) OR NOT. I THINK IF
WE WANT TO PULL SOME TEETH ON
THIS, IT SHOULD BE PART OF THE
REVIEW SYSTEM. IT IS SOMETHING
NIH CENTRAL HAS BEEN DISCUSSED
AND TAC COMMITTEE, ALL TRAINING
OFFICERS ACROSS THE BOARD
EXTRAMURAL PEOPLE. BUT IT IS
SOMETHING THAT IS IN DISCUSSION.
BUT IT WOULD BE GREAT IF WE CAN
ACTUALLY PULL SOME TEETH IN THIS
BECAUSE WHEN YOU SUBMIT PROGRESS
REPORT DO INCLUDE TABLE FOR
DIVERSITY AND DIVERSE TRAINEES
BUT WE DON'T HAVE ANY WAY TO SAY
HEY I CAN TELL THE PI SAY HEY
YOU NEED TO INCREASE DIVERSITY
EFFORT BUT WE CANNOT DO ANYTHING
IN TERMS OF I HOPE WE HOLD A
GRANT OR SOMETHING LIKE THAT
BECAUSE THAT IS NOT HOW.
>> CYNTHIA, YOU ARE TALKING
ABOUT YOUR OWN LAB.
>> RIGHT. EXACTLY EXACTLY.
>> ISN'T THERE SOMETHING WE CAN
DO THERE TO ENCOURAGE PIs, TO
DO A LITTLE BIT MORE IN THAT
AREA. SO THANK YOU FOR THAT
THOUGHT. WE NEED TO THINK ON
THAT AND HOW TO PUT SOME TEETH
INTO ENCOURAGING THAT.
>> I THINK THERE IS ALSO EFFORTS
GOING ACROSS NIH ON MENTORING
AND HOW TO APPROPRIATELY REWARD
OR ENCOURAGE PIs TO INCREASE
MENTORING ABOUT DIVERSITY
INCLUSION ISSUES. NOT JUST
INDIVIDUALS WHO ARE FROM DIVERSE
BACKGROUNDS BUT IN GENERAL HOW
TO INCREASE MENTORING ABOUT
DIVERSITY INCLUSION. LOOK
FORWARD FOR NIH EFFORTS ON THAT.
>> THANK YOU, BECKY. RUTH ANN,
YOU GOT YOUR HAND UP?
>> THANK YOU, EVERYBODY FOR THIS
STIMULATING PRESENTATION, IT IS
REALLY PROVOKED A LOT OF
THOUGHT, I DO SOME WORK AT THE
INSTITUTIONAL LEVEL HERE IN THIS
AREA AND I'M THRILLED TO HAVE
THE OPPORTUNITY TO USE YOUR
WEBSITE TO GET SOME MORE IDEASS.
ELYSSA'S MENTION OF THE
ACCOUNTABILITY COMMITTEE WHICH
SOUNDS A LITTLE FRIGHTENING, BUT
IT DID MAKE ME THINK OF THE
QUESTION I HAVE WHICH IS HOW DO
WE MEASURE SUCCESS? WE ALL
RECOGNIZE THIS IS A LONG TERM
PROJECT. BUT OUR CONSTITUENTS,
THE STUDENTS AT AN INSTITUTION
LIKE iMAT, THEY WANT TO SEE
FAST SUCCESS. SO HOW DO WE SET
BENCHMARKS AND KEEP TRACK OF
WHETHER ALL OF OUR GREAT IDEAS
ARE HAVING IMPACT. WHAT ARE THE
IMPACTS WE WANT TO SEE. HAVE YOU
FOLKS LAID THAT OUT IN ALL THESE
DOCUMENTS I HAVEN'T YET READ?
>> THANKS, RUTH ANN. I KNOW IN
OUR CASE THERE HAS BEEN A LOT OF
DISCUSSION IN THESE GROUPS ABOUT
HOW YOU MEASURE SUCCESS. SO
EXACTLY WHAT YOU ARE TALKING
ABOUT. SO ONE OF THE MEASURES
THAT YOU CAN LOOK AT IS THE
DEMOGRAPHIC DISTRIBUTION OF OUR
PROGRAMS AND TO SEE IF WE
GETTING CLOSER TO THE
DEMOGRAPHIC DISTRIBUTION OF SAY
OUR COUNTRY OR THE GLOBE. THAT
IS ONE AREA WE CAN LOOK AT BUT
IT IS NOT THE ONLY MEASURE. SO
THAT'S PART OF THE REASON ALSO
THAT WE LAUNCHED INTERNALLY
PULSE SURVEYS TO GET A SENSE OF
WHAT IS THE CLIMATE, HOW
INCLUSIVE IS THE ENVIRONMENT, SO
WE CAN LOOK AT THOSE AS MEASURES
ALSO AND SEE IF THEY SHIFT IN
ONE DIRECTION OR ANOTHER. SOME
OF THESE ARE NOT PARTICULARLY
MEASURABLE. THEY ARE EFFORTS
THAT YOU CAN ADD TO THE OVERALL
INCLUSIVENESS OF THE CULTURE,
THEY THINK YOU ARE MOVING THE
INSTITUTE IN A POSITIVE
DIRECTION. BUT IT WILL BE
CHALLENGING TO MEASURE THE
DIRECT IMPACT OF EVERY
RECOMMENDATION WE HAVE. SOME
MORE DIRECTLY MEASURABLE THAN
OTHERS BUT IT IS A CONTINUOUS
CONVERSATION TO FIGURE OUT HOW
WE CAN FIGURE OUT IF EFFORTS
PEOPLE PUT IN ARE MAKING A
DIFFERENCEDIFFERENCE. SO WE CONTINUE TO
TALK ABOUT THAT.
>> ARE YOU THINKING AT ALL ABOUT
DATA COLLECTION FROM YOUR OWN
COMMUNITY? SO THE HEARING
RESEARCH OR RESEARCH COMMUNITY
INTRAMURAL OR EXTRAMURAL OR ARE
YOU COUNTING ON RELYING ON OTHER
SOURCES OF DATA? SO PART OF OUR
MEASURE OF SUCCESS IS GOING TO
BE DATA SO WE ALL PUT UP
PERCENTAGES OF UNDER-REPRESENTED
PEOPLE IN OUR GROUP WHERE DO
THOSE COME FROM, WHO IS TRACKING
IT FOR NIDCD?
>> THAT IS A GREAT QUESTION,
RUTH ANN. SO THERE ARE COUPLE OF
ELEMENTS THERE TO THE DATA
COLLECTION. SO THERE'S
DEMOGRAPHIC DATA. AND SO THAT'S
CENTRALLY COLLECTED AT NIH BUT
ONLY AVAILABLE FOR FEDERAL
EMPLOYEES, ESSENTIALLY. SO THERE
ARE SOME OTHER METHODS
INTERNALLY LOOKING AT THE
TRAINEE POPULATION AND INTERNAL
DEMOGRAPHIC DATA. I THINK IN
GENERAL WE DON'T REALLY HAVE
CONTRACTOR DEMOGRAPHIC DATA BUT
BECAUSE THAT IS PART OF A LARGER
EFFORT THAT IS SOMETHING UNITE
FOCUSED VERY HEAVILY ON SO THERE
IS A LOT OF EFFORT CENTRALLY AT
NIH TO BETTER DEMOGRAPHIC DATA.
THE THE OTHER DATA WE ARE
LOOKING AT IS MORE SURVEY DATA
ASSESSING CLIMATE. WE HAVE
MULTIPLE SURVEYS THE PULSE
SURVEY THAT JUST LAUNCHED IN
INTRAMURAL SPECIFICALLY BESURVEY
OUR TRAINEES EVERY YEAR. THEN
THERE'S THE FEDERAL EMPLOYEE
WIDE VIEWPOINT SURVEY WHICH ONLY
SURVEYS FEDERAL EMPLOYEES. SO
THERE ARE AREAS IN WHICH WE HAVE
DECENT DATA AND THEN THERE ARE
GAPS SO WHAT THESE NIDCD AND NIH
WIDE COMMITTEES ARE LOOK AT IS
WHAT DATA DO WE HAVE, WHAT DATA
DO WE NEED, HOW CAN WE USE THE
DATA THAT WE HAVE ACCESS TO AND
HOW WE FILL THE GAPS SO IT IS
DEFINITELY SOMETHING PEOPLE
CONTINUE TO CONSIDER AND TRY TO
IMPROVE ON.
>> THANKS SO MUCH. CAROL. .
>> HI. .
THIS IS A WONDERFUL REPORT. YOU
GUYS HAVE DONE OBVIOUSLY YOU
HAVE DONE A LOT OF WORK AND A
LOT OF THINKING THROUGH THE
REPORT THAT WE DID FOR YOU GUYS
AND IMPLEMENTING THE IDEAS AND I
REALLY APPRECIATE ALL YOU GUYS'
EFFORTS. I JUST HAVE A COUPLE OF
QUESTIONS. ONE IS ABOUT THE
PILOT PROGRAM, FOR THIS SUMMER,
FOR HIGH SCHOOL AND
UNDERGRADUATE STUDENTS VERY
EXCITED ABOUT THAT PROGRAM. I
WONDER HOW WILL YOU GET THE WORD
OUT THOUGH TO MAKE SURE THAT
PEOPLE ARE AWARE, BECAUSE NOT
EVERYBODY IS GOING TO COME TO
YOUR WEBSITE. THEY DON'T EVEN
KNOW TO COME TO YOUR WEBSITE. SO
I'M WONDERING DO YOU HAVE A PLAN
OF HOW TO ADVERTISE THIS WITH
HIGH SCHOOL COUNSELORS AND I'M
NOT EVEN SURE HOW YOU GET INTO
THE UNDERGRAD -- TO THE COLLEGES
BUT SURE THERE ARE PLACES WHERE
THIS INFORMATION SHOULD BE
DISSEMINATED SO THAT STUDENTS
ARE LIKELY TO SEE IT. OR TO BE
TOLD ABOUT IT. I'M JUST TRYING
TO FIGURE OUT HOW TO GET THIS
INFORMATION IN FRONT OF A LARGE
GROUP PARTICULARLY MINORITY
STUDENTS, SO THAT THEY EVEN KNOW
TO APPLY FOR THIS.
>> THAT WOULD BE WONDERFUL IF WE
CAN DO ALL YOU SAID CAROL BUT
THE WAY WE ARE GETTING THE WORD
OUT IS BETOLD OUR FUNDED
GRANTEES, HERE IS AN
OPPORTUNITY, GO FIND THESE
PEOPLE. OF COURSE THAT IS VERY
LIMITED. WE KNOW -- THIS IS WHY
IT IS A PILOT. WE WILL SEE IF
DOING THIS WAY WE HOPE WHEN THE
MINORITY -- I MEAN WHEN THE
DIVERSITY COORDINATOR COMES ON
BOARD THAT SHE OR HE MAY HAVE
SOME IDEAS ABOUT HOW TO REACH
OUT. WE REALLY JUST DON'T HAVE
THE RESOURCES TO AT THIS POINT
TO REACH OUT TO HIGH SCHOOL
COUNSELORS AND WE DIDN'T WANT IT
TO BE LIMITED TO JUST OUR AREAS
LIKE THE DC VIRGINIA AREA, SO WE
THOUGHT WE WOULD START WITH OUR
OWN INVESTIGATORS AND SEE. THIS
REMIND ME OF RUTH ANN'S
QUESTION, HOW ARE WE GOING TO
TELL THIS PROGRAM WORKS SO THIS
IS REALLY JUST PUTTING OUR FEET
IN THE WATER FOR TRYING TO REACH
OUT TO HIGH SCHOOL AND
UNDERGRADUATES AND SEE WHAT
HAPPENS.
>> I CAN SEE HOW THE GRANT --
TELLING THE GRANTEES ABOUT IT
WILL HELP WITH UNDERGRAD SO NOT
SURE HOW THAT WILL HELP SO MUCH
WITH HIGH SCHOOL STUDENTS
THOUGH.
>> HIGH SCHOOL IS A MUCH BIGGER
CHALLENGE, TOTALLY AGREE AGREE.
NIRUPA.
>> THANK YOU. SO MY -- I HAVE
BEEN THINKING ALONG THE SAME
LINES AS RUTH ANN'S QUESTION,
AND I THINK NIH DOES A REALLY --
HAS DONE A WONDERFUL JOB WITH
THE UNITE PROGRAM AND SPECIFIC
THINGS WE HEARD ABOUT THIS
MORNING. REGARDING ALL OF THE
MAJOR INITIATIVES, ET CETERA. I
THINK IT IS REALLY IMPORTANT IN
ADDITION TO THE CENTRALIZED
EFFORT HAVE A MUCH MORE
DISTRIBUTED EFFORT. WHAT YOU ARE
SAYING WITH SENDING THE NOTICES
TO FUNDED PIs, IS ONE PLACE TO
DO THAT OR ONE WAY TO DO THAT.
BUT I THINK I APPRECIATE YOU ARE
LIMITED BY NIH STRUCTURE AND
ROLES BUT I THINK YOU COULD USE
A SURVEY MECHANISM TO ALL OF
YOUR NIH GRANTEE AND SEE HERE
ARE A NUMBER OF THINGS. SOMEBODY
WOULD HAVE TO DEVELOP THE SURVEY
BUT IT SEEMS IT MIGHT BE QUITE
EFFECTIVE IN COLLECTING WHAT IS
HAPPENING OUT THERE IN THE
FIELD, IN THE COUNTRY AS OPPOSED
TO YOUR OWN INTRAMURAL PROGRAMS.
BUT SECONDARILY IT HAS HUGE
EFFECT ON REMINDING ME OF ALL
THE THINGS WE CAN DO. THAT IS
HUGE VALUE ADD SO IF YOU REPEAT
SURVEY, IT IS NOT COMPULSORY FOR
PIs BUT JUST GETTING THAT AND
LOOKING AT IT AND SAYING OH HERE
ARE SOME OF THE THINGS, SO I
HAVE CONTACTED UNDERGRADUATES
PERHAPS LIKE CAROL DOES BUT THEN
SOMEBODY ELSE IS IN A MORE
COMMUNITY THAT BRINGS IN HIGH
SCHOOL STUDENTS FOR THE SUMMER,
ET CETERA. IF I HAVE CONTACT
WITH THOSE STUDENTS, EVERYBODY
CAN SEES THEMSELVES BEING ABLE
TO CONTRIBUTE A PIECE PIECE. THAT
MIGHT REALLY HELP IF YOU PUT
SPECIFICS DOWN AND IF YOU
CONTRIBUTED TO THIS, HAVE YOU
GOTTEN THIS, WHAT IS YOUR WORK
FORCE AND YOUR LAB LOOK LIKE. I
THINK JUST GETTING PIs
REMINDED WOULD BE VALUABLE.
>> THANK YOU, WE WILL TAKE THAT
BACK AND THINK ON THAT
SUGGESTION. THANK YOU. VICKIE.
>>
>> I WANT TO FIRST UNDERSCORE
THE THE COMMENTS MADE ABOUT ALL
THAT'S BEEN DONE. THIS IS
PHENOMENAL. THE BREADTH OF
ATTENTION TO DIVERSITY I THINK
IS HUGE. YOU ARE TO BE COMMEND
AND WORK THE GROUPS HAVE PUT IN
IS NOTABLE. I WANTED TO
UNDERSCORE TWO EARLIER POINTS
RELATIVE TO THE OUTREACH PIECE.
I THINK THE OUTREACH YOU ARE
LOOKING AT RELATIVE TO HBCUs
AND MINORITY SERVING
INSTITUTIONS IN GENERAL IS A
GREAT IDEA AND YOU CAN EXPAND
INTO CONFERENCES AND
ASSOCIATIONS THAT ARE IDENTITY
GROUP FOCUSED. BUT THERE IS A
NEED TO FIND A WAY TO GET THAT
TO HAPPEN AT A GRASSROOTS LEVEL
AT THE SAME TIME. SO SOMETHING
TO THINK ABOUT IS SOME KIND OF I
DON'T WANT TO CALL IT AN
ALLYSHIP PROGRAM BUT BASICALLY
IT IS AN ALLYSHIP PROGRAM THAT
IS A TERM UNDER FIRE LATELY
WHICH IS THE REASON I DON'T WANT
TO USE IT. BUT I DON'T HAVE A
BETTER ONE. BUT EVEN IDENTIFYING
AN PASS BOAR DOORS, PEEP --
AMBASSADORS, PEOPLE COMMITTED TO
DEI WHO WANT TO DO SOMETHING AND
AREN'T REALLY SURE WHAT TO DO.
TO IDENTIFY WAYS THAT THEY CAN
START TO MODEL BEHAVIORS THAT
YOU ARE LOOKING FOR IN THEIR OWN
LABS, BUT ALSO IN THEIR
RECRUITMENT BUT THEN ALSO DEMON
INVESTIGATE THAT FOR OTHERS --
DEMONSTRATE THAT FOR OTHERS AND
THAT GIVES YOU AN OPPORTUNITY
TOO TO HIGHLIGHT THAT AS
EXAMPLES TO BE REPLICATED. THE
OTHER PIECE GETS AT THE EQUITY
PIECE, YOUR CHIEF DIVERSITY
OFFICER IS GOING TO HAVE THEIR
HANDS FULL ONCE THEY ARE ON
BOARD BUT YOU MAPPED OUT A
REALLY GOOD WAY OF HAVING THAT
EQUITY AND INCLUSION SURVEY WILL
BE REALLY HELPFUL TO THEM WHEN
THEY DO COME ON BOARD AS WELL AS
HOW TO CURATE CONTENT IN A WAY
THAT IS STRATEGIC SO THAT IT CAN
BE DISSEMINATED TO THOSE TARGET
GROUPSGROUPS. BUT IN THAT THERE HAS TO
BE SOME DEFINITION OF
EXPECTATION. THIS GETS AT WHAT I
WAS HEARING YESTERDAY WHEN DR.
BERNARD TALKED, SHE WAS A LOT
MORE EXPLICIT IN TERMS OF THESE
ARE THINGS THAT WE EXPECT OF OUR
RESEARCHERS, OF OUR TRAINEES, OF
THE PEOPLE ACROSS THE BOARD AND
SPELLING THAT OUT GIVEN NIH'S
COMMITMENT HERE ARE THE
BEHAVIORS WE EXPECT AS YOU DO
RESEARCH, AS YOU RECRUIT, AND
YOU HAVE MAPPED OUT SOME OF
THOSE. BUT I THINK WITHOUT THAT
YOU SPAN THE RISK OF BRINGING
PEOPLE IN AND HAVING THEM
PARTICIPATE ONLY TO NOT BE ABLE
TO PARTICIPATE AS FULLY AS HAY
SHOULD BE BECAUSE THE SYSTEMS
THAT UNDERLIE THIS HAVEN'T BEEN
EVALUATED. THOSE SYSTEMS HAVE TO
BE TAKEN APART AND PUT BACK
TOGETHER AGAIN. THE REVIEWERS
HAVE TO BE TRAINED, ALL THE
THINGS DR. BERNARD TALKED ABOUT
HAVE TO BE DONE WITHIN THIS
CONTEXT. WHEN I LOOK THROUGH THE
PROPOSALS THERE IS THIS IS
SUBJECTIVE ON A QUALITATIVE
RESEARCH N OF 1, THERE IS A HUGE
RANGE OF DISPARITY OF REVIEWS OF
INDIVIDUALS WHO ARE EITHER PEEP
OF COLOR OR ARE LOOKING --
PEOPLE OF COLOR OR LOOK AT
CONTENT THAT ADDRESSES PEOPLE OF
COLOR. SO YOU GET SOME PEOPLE
WHO ARE LIKE YES, THIS IS GREAT,
WONDERFUL AND OTHER PEOPLE WHO
ARE RANKING IT IN AT THE OTHER
END OF THE SCALE, THAT DISPARITY
IS TELLING A STORY. AND THE ONLY
WAY TO GET THAT STORY CHANGED IS
TO GET ALL OF THOSE PEOPLE IN
THE SAME PAGE AND GIVE THEM
TEMPLATES AND THE RESOURCES TO
EVALUATE AS OBJECTIVELY AS
HEADACHE. THERE'S GOING TO BE
BIAS BUT INCREASING THAT
AWARENESS OF THEIR BIAS SO THAT
THEY CAN IMPLEMENT EFFECTIVELY.
ONE LAST COMMENT THAT
ACCOUNTABILITY PIECE, HINGES ON
IMPLEMENTATION. IT IS NOT
PASSIVE, IT WON'T JUST HAPPEN.
SO EVEN IF YOU JUST PUT -- IF
YOU PUT MEASURES IN PLACE, THOSE
MEASURES, THERE HAS TO BE
IMPLEMENTATION BEHIND THOSE
MEASURES. I'M GOING TO SHUT UP.
THANK YOU.
>> DID YOU WANT THE SAY
SOMETHING? ELYSSA?
>> THANKS, JUDITH. I WANTED TO
RESPOND TO THAT, IT SOUNDS LIKE
THAT WAS BASED MORE ON THE
EXTRAMURAL COMMUNITY THAN NIDCD
SPECIFIC STAFF TRAINEES AND
EMPLOYEES. SO I JUST WANTED TO
RESPOND THAT IT IS WAS MORE
DIRECTED INTERNALLY, SOMETHING
ACCOUNTABILITY SUBCOMMITTEE IS
PLANNING TO HELP WITH IN TERMS
OF NEW LANGUAGE COMING OUT IN
THE PERFORMANCE PLANS, IS TO
PROVIDE EVERYONE ALL SUPERVISORS
ESSENTIALLY WITH THE LIST OF
THESE ACCOMPLISHMENTS YOU CAN
LOOK AT WHEN YOU ARE EVALUATING
THIS ELEMENT. IF SOMEBODY
EXHIBITS A B OR C BEHAVIORS OR
ACTIONS, THIS IS SOMETHING YOU
CAN CONSIDER EVALUATING
POSITIVELY FOR THIS DIVERSITY
FOCUS ELEMENT. SO PART OF WHAT
THAT SUBCOMMITTEE HELPS WITH IS
TRYING TO GET PEOPLE TO SEE WHAT
DOES IT LOOK LIKE FOR SOMEBODY
WHO IS DOING WELL, IN THIS
SPACE. WHAT ACTIONS COULD WE
LOOK FOR FOR PEOPLE WHO AREN'T
USED TO LOOKING FOR THOSE
ACTIONS OR THINKING ABOUT WHAT
THEY MIGHT BE MIGHT BE. SO PART OF WHAT
THEY AT LEAST FOR THE NIDCD
STAFF, ARE PLANNING ON HELPING
WITH. T IN THE IMPLEMENTATION
PHASE.
>> AND I THINK OUTLINING THOSE
EXPECTATION -- THE EXPECTATIONS
THAT RESULT FROM THAT IS GOING
TO WORK IN BOTH THOSE CONTEXT.
>> THANK YOU, VICKIE. LISA HAD
HER HAND UP FOR A WHILE.
>> THANK YOU. I MAINLY WANTED TO
EXPRESS HOW THRILLED I AMBITHE
PROGRESS MADE IN THIS SHORT
TIME, IT IS A WONDERFUL
PROGRESS. BUT I WANTED TO PLANT
A COUPLE OF THEMES THAT CAME UP
OF COURSE EVERY OPPORTUNITY
PRIMARILY I THINK IN -- IN
SEVERAL PEOPLE'S COMMENTS THAT
ARE IN THE REPORT THAT MIGHT BE
MORE RELATED TO BIGGER POLICY
AND HARDER TO CHANGE. ALBERTO
MENTIONED RECREW CRITERIA,
TRAINING CRITERIA, F 32s, T
32s WERE MENTIOND BYIA, WE
HAVE ETHICS COMPONENTS, CAN
DIVERSITY TRAINING COMPONENTS BE
EMBEDDED AS A COMPONENT OF
TRAINEE, VIA THAT KIND OF
MECHANISM. WE ALSO THE REPORT
MENTIONED REVIEW CRITERIA
REGARDING DIVERSE RESEARCH
TOPICS, DIVERSE TEAMS, I KNOW
THAT'S A BIGGER ISSUE BUT I
THINK IT IS REALLY IMPORTANT. TO
KEEP ON THE TABLE. IT IS
WONDERFUL THAT ALL THESE SAMPLE
GRANTS ARE NOW BEING COLLECTED
FOR PEOPLE. MANY ON THE PANEL
AND I THINK ACROSS COUNCIL AND
OTHERS ARE ANXIOUS TO SERVE AS
MENTORS AS MORE INSTITUTIONS,
AND MORE INDIVIDUALS COME INTO
THE PROCESS SO I WANTED TO
HIGHLIGHT SOME ADDITIONAL
COMPONENTS OF THE REPORT. MANY
PEOPLE HAVE HIGHLIGHTED MANY
OTHERS, AND I'M THRILLED BY THE
PROGRESS MADE. THIS IS REALLY
EXCITING AND WONDERFUL. THANKS,
ALL.
>> THANK YOU, LISA AND THANK YOU
FOR YOUR LEADERSHIP IN THIS. SO
WE ARE GETTING CLOSE TO TIME BUT
I THINK WE HAVE TIME FOR MAYBE
TWO MORE QUESTIONS AND WE HAVE
TWO HANDS. CAROL. BACK TO YOU.
>> THANK YOU. SO I'M JUST PIGGY
BACKING ON WHAT VICKIE SAID AND
WHAT LISA SAID, THERE IS ALSO WE
NEED MORE DIVERSITY IN THE
REVIEWERS THAT ARE SERVING ON
THE PANELS THAT ARE MAKING
JUDGMENTS ABOUT THESE PROPOSALS.
PEOPLE BRING UP VERY DIFFERENT
PERSPECTIVE. PARTICIPATING IN
THAT DISCUSSION AND HELPING
PEOPLE SEE VALUE IN THINGS THAT
MAY NOT BE VALUING RIGHT NOW
BECAUSE NOT HAVING THAT DIVERSE
PERSPECTIVE. SO I THINK THAT IS
VERY, VERY IMPORTANT AND THAT WE
GET MORE PEOPLE THAT WE ARE
GIVING GRANTS TO THAT ARE PEOPLE
OF COLOR INVOLVING MORE THAN IN
TERMS OF BEING ON THESE PANELS.
ALSO WE TALKED ABOUT -- I KNOW
THIS IS FOR -- Y'ALL ARE STILL
CONTINUING TO SUGGESTIONS,
RECOMMENDATIONS FROM WHAT WE DID
AND SOME OF THIS WILL BE ON THE
CHIEF DIVERSITY OFFICER BUT WE
ALSO TALKED ABOUT MAKING SURE
PROPOSALS FROM PEOPLE OF COLOR
AND PEOPLE WITH DISABILITIES ARE
ALL SCORED SO THEY HAVE AN
OPPORTUNITY TO RESPOND TO THOSE
REVIEWS LIKE ESIs, EARLY STAGE
INVESTIGATORS GET SCORED NOW AND
THAT MIGHT HELP PROMOTE MORE
FAIRNESS TOO.
>> THANK YOU FOR RAISING THOSE
ISSUES, CAROL. WONDER IF BECKY,
DID YOU WANT TO SAY ANYTHING
ABOUT USING PEOPLE FROM DIVERSE
BACKGROUNDS ON REVIEW PANELS?
>> WE DO OUR BEST TO RECRUIT AS
DIVERSE PERSPECTIVES AS WE CAN
TO REVIEW PANELS. I WILL SAY AS
YOU HAVE ALREADY HEARD MULTIPLE
TIMES NIH HOLDS THE PRIVATE DATA
OF INDIVIDUALS RACIAL ETHNIC
GENDER INFORMATION VERY CLOSELY
AND ONLY SELECT PEOPLE ICs
HAVE ACCESS TO THAT INFORMATION.
SO IT IS NOT SOMETHING THAT IS
WIDELY AVAILABLE TO MAKE THAT
EASILY SOMETHING THAT WE CAN
ACCOMPLISH BUT WE DO LOOK AT THE
PANEL MAKEUP TO MAKE SURE WE
HAVE PERSPECTIVES IN TERMS OF
SCIENCE AS MUCH AS WE CAN FROM
INSTITUTIONAL SIDES, INDIVIDUALS
WHO HAVE EXPERTISE IN THAT. SO
THERE IS THAT BALANCE JOB WE DO
BUT WE ARE ALWAYS LOOKING TO
INCREASE THE DIVERSITY OF OUR
PERSPECTIVES AND REVIEW AND WE
ARE HAPPY TO TAKE NAMES OR
SUGGESTIONS ALWAYS IF PEOPLE
WANT TO SEND THOSE TO OUR REVIEW
STAFF, WE WILL OUR REVIEW BRANCH
CHIEF, SO IF YOU KNOW PEOPLE YOU
CAN EMAIL AND SAY HEY I WOULD
LIKE THE VIE, WE'LL TAKE THEIR
NAMES AND KEEP THEM IN
CONSIDERATION FOR FUTURE REVIEW
PANELS TOO.
>> THANK YOU, BECKY. OKAY. AND
THEN I THINK GLENN HAS THE FINAL
HAND UP.
>> LYNNE.
>> THANK YOU. FANTASTIC WORK. IT
IS INCREDIBLE THIS HAPPENED SO
QUICKLY AND WHAT HAS BEEN PUT
TOGETHER. I DID HAVE ONE THOUGHT
TO FOLLOW-UP ON WHAT CAROL WAS
SAYING ABOUT REACHING HIGH
SCHOOL STUDENTS AND YOUNG
PEOPLE. SOMETHING THAT I DON'T
HEAR A LOT OF TALK ABOUT WHICH
WE FOUND IS REALLY THE WAY IT IS
NOWADAYS IS SOCIAL MEDIA. YOU DO
HAVE AN OFFICE OF COMMUNICATIONS
AND PUBLIC LIAISON, YOU HAVE
MILLIONS AND MILLIONS OF PAGES,
FACEBOOK, TWITTER, NIH, REALLY
PROBABLY YOU SHOULD BE ON TIKTOK
BELIEVE IT OR NOT. SO YOU HAVE
YOUTUBE AND CHANNELS AND YOU
COULD DO A VLOG AND A BLOG AND
WEB POSTS THAT JUST SAYS WE ARE
LOOKING FOR THIS, WE WANT YOU,
WE ARE INTERESTED, WE WILL HELP
YOU AND DRAG THEM BACK TO THAT
FANTASTIC WEBSITE THAT YOU HAVE.
WHICH WOULD NOT ACTUALLY BE THAT
LABOR INTENSIVE IF YOU CAME UP
WITH CERTAIN POSTS AND PUT ON
EVERYONE OF THEM.
>> THANK YOU, LYNNE. I WILL LET
JOANNE HEAR ABOUT THIS TO
COMMENT ABOUT AND REACT TO THAT.
WHAT SHE IS ALREADY DOING AND
WHAT SHE MIGHT BE PLANNING.
>> GREAT POINT. AND WE ARE VERY
ACTIVE ON TWITTER AND FACEBOOK
AS YOU NOTICEN OUR WEBSITE SO WE
DO WORK CLOSELY WITH BOTH THE
EXTRAMURAL AND INTRAMURAL STAFF
TO CREATE POSTS AND WE CAN
CERTAINLY PLAN TO DO MORE OF
THAT, WE WILL BE PROMOTING
OBVIOUSLY OUR NEW WEB PAGE IN
THE.
COOING WEEKS. AND IT IS A
PRIORITY. WE DEVELOP VIDEOS, WE
HAVE A LOT OF MATERIALS THAT WE
PUSH OUT THERE TO KIND OF ENGAGE
WITH THE YOUNGER GROUP.
UNFORTUNATELY TIKTOK IS NOT AN
OPTION FOR US, THAT'S AT HHS
LEVEL, THEY HAVEN'T FIGURED HOW
TO ALLOW US ON TIKTOK BUT
CERTAINLY THE OTHER CHANNELS WE
ARE VERY ACTIVE AND PLANT TO
CONTINUE TO DO SO. -- PLAN TO
CONTINUE TO DO SO.
>> OKAY. I THINK MAYBE WE ARE
GOING TO TURN IT BACK TO YOU
DEB.
>> THANK YOU FOR THE DISCUSSION.
THIS HAS BEEN AMAZING. AND WE
REALLY APPRECIATE EVERYONE'S
WORK ON THIS ON OUR STAFF, AND
EVERYBODY'S ENGAGEMENT ON THE
PART OF COUNCIL. HUGELY HELPFUL.
BECKY, COULD YOU QUICKLY ANSWER
VICKIE'S QUESTION?
>> SHE ASKED IF REVIEWERS HAVE
TO HAVE BEEN PREVIOUSLY FUNDED.
THAT IS NOT A REQUIREMENT, WE
WANT FAMILIARITY WITH NIH REVIEW
PROCESS, WE CAN'T HAVE ALL
PANELS WHO DON'T KNOW ANYTHING
ABOUT THE PROCESS OF FUNDED,
THAT ONE THING WE LOOK FOR BUT
IT IS NOT A -- DOESN'T
DISQUALIFY YOU IF YOU HAVE NOT
RECEIVED NIH FUNDING TO BE ON
OUR REVIEW PANELS.
>> THANK YOU THANK YOU. THIS DISCUSSION IS
TO BE CONTINUED. WE WILL SHARE
WITH YOU OUR PROGRESS IN FUTURE
MEETINGS OF THIS COUNCIL AND
ALSO PUT OUT MORE INFORMATION ON
OUR WEB PAGES AND PUBLIC FACING
INFORMATION VENUES. SO THANK YOU
ALL FOR A VERY PRODUCTIVE
COUNCIL MEETING. I WISH YOU ALL
WELL AND WE WILL SEE YOU
VIRTUALLY IN MAY. BYE-BYE.
>> THANK YOU. BYE-BYE.
>> THANKS, EVERYBODY. .