1 00:00:05,000 --> 00:00:08,760 >> I WANT TO WELCOME EVERYONE TO 2 00:00:08,760 --> 00:00:12,680 THE MEETING OF THE NICHD 3 00:00:12,680 --> 00:00:14,440 STILLBIRTH WORKING GROUP OF 4 00:00:14,440 --> 00:00:18,880 COUNCIL. I'M THE DEPUTY 5 00:00:18,880 --> 00:00:27,920 DIRECTOR OF THE KENNEDY SHRIVER 6 00:00:27,920 --> 00:00:30,160 DEPARTMENT OF HUMAN DEVELOPMENT. 7 00:00:30,160 --> 00:00:32,480 WE LOOK FORWARD TO HEARING FROM 8 00:00:32,480 --> 00:00:34,560 SO MANY THAT HAVE ASKED TO SHARE 9 00:00:34,560 --> 00:00:36,080 THOUGHTS WITH THE WORKING GROUP 10 00:00:36,080 --> 00:00:38,880 AND WANT TO LET YOU KNOW AND 11 00:00:38,880 --> 00:00:40,880 INTRODUCE THE CO-CHAIRS AND 12 00:00:40,880 --> 00:00:42,120 DIRECTOR OF THE INSTITUTE AND 13 00:00:42,120 --> 00:00:44,120 LET YOU KNOW THEY WILL BE WITH 14 00:00:44,120 --> 00:00:46,160 US THROUGHOUT THIS LISTENING 15 00:00:46,160 --> 00:00:47,920 SESSION AND WANT TO GIVE AS MUCH 16 00:00:47,920 --> 00:00:49,880 TIME AS POSSIBLE TO HEARING FROM 17 00:00:49,880 --> 00:00:53,040 YOU AND RECOGNIZE THAT THERE BE 18 00:00:53,040 --> 00:00:57,320 DIANNE THE DIRECTOR THE KENNEDY 19 00:00:57,320 --> 00:00:58,920 SHRIVER NATIONAL INSTITUTE OF 20 00:00:58,920 --> 00:01:03,960 HUMAN HEALTH AND DEVELOPMENT AND 21 00:01:03,960 --> 00:01:05,640 [INDISCERNIBLE] WHO MAY OR MAY 22 00:01:05,640 --> 00:01:08,400 NOT BE ON CAMERA THE WHOLE TIME. 23 00:01:08,400 --> 00:01:11,040 WE WANT TO ALSO SPOTLIGHT YOU 24 00:01:11,040 --> 00:01:13,600 AND MAKE SURE WE SEE YOU AS THE 25 00:01:13,600 --> 00:01:15,840 MODERATOR AS WE ASK YOU TO KEEP 26 00:01:15,840 --> 00:01:18,120 YOUR COMMENTS RESPECTFULLY 27 00:01:18,120 --> 00:01:20,120 WITHIN [INDISCERNIBLE]. I WANT 28 00:01:20,120 --> 00:01:22,400 YOU TO KNOW THEIR CAMERAS MAY BE 29 00:01:22,400 --> 00:01:24,040 OFF BUT ARE LISTENING AND 30 00:01:24,040 --> 00:01:26,200 SHARING A SUMMARY OF THE FULL 31 00:01:26,200 --> 00:01:29,640 MEETING WITH THE FULL WORKING 32 00:01:29,640 --> 00:01:31,040 GROUP AND [INDISCERNIBLE]. 33 00:01:31,040 --> 00:01:33,320 JUST IN TERMS OF LOGISTICS FOR 34 00:01:33,320 --> 00:01:35,880 TODAY, WE HAVE RECEIVED A ROBUST 35 00:01:35,880 --> 00:01:39,240 RESPONSE FOR THE MEETING FROM 36 00:01:39,240 --> 00:01:40,880 ORGANIZATIONS THAT REGISTERED TO 37 00:01:40,880 --> 00:01:42,560 COMMENT DURING THIS SESSION. 38 00:01:42,560 --> 00:01:44,360 DUE TO RECENT UPDATES WE 39 00:01:44,360 --> 00:01:47,520 RECEIVED THIS MORNING, THE ORDER 40 00:01:47,520 --> 00:01:49,280 MAY CHANGE FROM THE INITIAL LIST 41 00:01:49,280 --> 00:01:51,080 YOU RECEIVE AND SLIGHT CHANGE IN 42 00:01:51,080 --> 00:01:53,120 TIMES YOU ARE PRESENTING AND 43 00:01:53,120 --> 00:01:54,560 MAKING SURE THAT EVERYONE WHO 44 00:01:54,560 --> 00:01:56,040 REGISTERED TO COMMENT IS 45 00:01:56,040 --> 00:01:57,680 COMMENTING AND IF YOU SEE AN 46 00:01:57,680 --> 00:01:59,720 E-MAIL FROM US GIVING YOU A TIME 47 00:01:59,720 --> 00:02:01,920 AND SOMETHING GOES WRONG, WE CAN 48 00:02:01,920 --> 00:02:03,600 TRY TO ADJUST AS POSSIBLE. FOR 49 00:02:03,600 --> 00:02:07,240 THOSE WHO REGISTERED AFTER THE 50 00:02:07,240 --> 00:02:09,360 NOON DEADLINE ON JANUARY 4TH, 51 00:02:09,360 --> 00:02:12,160 YOU CAN VIEW THE SESSION LIVE ON 52 00:02:12,160 --> 00:02:13,920 VIDEO CAST. AFTER THE SESSION 53 00:02:13,920 --> 00:02:17,280 YOU ARE WELCOME TO SUBMIT 54 00:02:17,280 --> 00:02:22,120 COMMENTS TO NATASHA WILLIAMS AT 55 00:02:22,120 --> 00:02:24,720 NIH.GOV. I BELIEVE SHE HAS 56 00:02:24,720 --> 00:02:25,640 E-MAILED YOU ALREADY AND PLEASE 57 00:02:25,640 --> 00:02:27,320 NOTE THE SESSION WILL BE LIVE 58 00:02:27,320 --> 00:02:29,120 AND RECORDED. SUBSEQUENT 59 00:02:29,120 --> 00:02:31,640 REPORTING WILL BE POSTED ON THE 60 00:02:31,640 --> 00:02:33,640 NIH VIDEOCAST. 61 00:02:33,640 --> 00:02:35,560 FOR ORGANIZATIONS THAT 62 00:02:35,560 --> 00:02:37,200 IDENTIFIED MORE THAN ONE 63 00:02:37,200 --> 00:02:39,120 SPOKESPERSON, WE ASK THAT ONE 64 00:02:39,120 --> 00:02:39,800 REPRESENTATIVE SPEAK FOR THE 65 00:02:39,800 --> 00:02:42,480 ORGANIZATION AND OTHERS SPEAK AS 66 00:02:42,480 --> 00:02:42,920 INDIVIDUALS. 67 00:02:42,920 --> 00:02:45,240 BASED UPON THE NUMBER OF THOSE 68 00:02:45,240 --> 00:02:46,400 REGISTERED, WE HAD PREVIOUSLY 69 00:02:46,400 --> 00:02:48,080 SHARED WITH YOU ORGANIZATIONS 70 00:02:48,080 --> 00:02:51,280 WILL HAVE FIVE MINUTES TO SPEAK 71 00:02:51,280 --> 00:02:52,920 AND INDIVIDUALS WILL HAVE THREE 72 00:02:52,920 --> 00:02:55,360 MINUTES TO SPEAK TO MAKE SURE WE 73 00:02:55,360 --> 00:02:56,680 ARE RESPECTFUL OF ALL YOUR TIME 74 00:02:56,680 --> 00:02:59,920 AND WE CAN TRY TO ACCOMMODATE TO 75 00:02:59,920 --> 00:03:01,400 THE GREATEST EXTENT POSSIBLE 76 00:03:01,400 --> 00:03:02,520 GIVEN A LITTLE OF EXTENSION OF 77 00:03:02,520 --> 00:03:04,920 THE TIME THAT WE HAVE AVAILABLE 78 00:03:04,920 --> 00:03:07,520 AND WE HAVE THE VIDEOCAST 79 00:03:07,520 --> 00:03:09,160 AVAILABLE UNTIL 6 AND WILL HAVE 80 00:03:09,160 --> 00:03:11,960 A HARD STOP AT 6. THE ORDER OF 81 00:03:11,960 --> 00:03:12,880 THE ORGANIZATIONS AND 82 00:03:12,880 --> 00:03:14,680 INDIVIDUALS TO GIVE COMMENTS WAS 83 00:03:14,680 --> 00:03:17,560 BASED UPON THE TIME AND DATE OF 84 00:03:17,560 --> 00:03:17,920 REGISTRATION. 85 00:03:17,920 --> 00:03:19,880 WE WILL ASK SPEAKERS TO TURN ON 86 00:03:19,880 --> 00:03:22,200 THEIR CAMERA AND INTRODUCE 87 00:03:22,200 --> 00:03:24,080 THEMSELVES AND HOWEVER IF YOU 88 00:03:24,080 --> 00:03:26,360 ARE NOT COMFORTABLE BEING ON 89 00:03:26,360 --> 00:03:28,240 CAMERA, PLEASE LET US KNOW. 90 00:03:28,240 --> 00:03:31,040 DON'T TURN ON YOUR CAMERA. 91 00:03:31,040 --> 00:03:32,840 PLEASE PROCEED WITH 92 00:03:32,840 --> 00:03:33,600 [INDISCERNIBLE]. I WILL TURN ON 93 00:03:33,600 --> 00:03:35,960 MY CAMERA WHEN ONE MINUTE IS 94 00:03:35,960 --> 00:03:37,320 LEFT FOR YOUR COMMENT. YOU WILL 95 00:03:37,320 --> 00:03:40,120 SEE IT APPEAR. I WILL SIGNAL 96 00:03:40,120 --> 00:03:41,800 YOU WHEN THERE ARE 15 SECONDS 97 00:03:41,800 --> 00:03:44,600 LEFT FOR YOUR REMARKS IF YOU ARE 98 00:03:44,600 --> 00:03:47,680 NOT JUST ABOUT TO WRAP UP. 99 00:03:47,680 --> 00:03:49,520 THE ZOOM CHAT FUNCTION WON'T BE 100 00:03:49,520 --> 00:03:51,000 AVAILABLE. WE THOUGHT IT WOULD 101 00:03:51,000 --> 00:03:53,880 BE A DISTRACTION DURING THE 102 00:03:53,880 --> 00:03:55,040 MEETING TO HAVE THAT. 103 00:03:55,040 --> 00:03:58,440 IF YOU HAVE LOGISTICAL QUESTIONS 104 00:03:58,440 --> 00:04:02,120 OR YOU HAVE QUESTIONS FOR OUR 105 00:04:02,120 --> 00:04:03,000 ADMINISTRATIVE STAFF, YOU NEED 106 00:04:03,000 --> 00:04:05,440 TO JUST -- I THINK IT WAS 107 00:04:05,440 --> 00:04:07,320 PROVIDED TO YOU AS WELL TO 108 00:04:07,320 --> 00:04:10,920 E-MAIL NICHD LOGISTICS IS ALL 109 00:04:10,920 --> 00:04:16,920 ONE WORD. NICHD EVENT LOGISTICS 110 00:04:16,920 --> 00:04:26,480 AT BIZZEL -- BIZZELLUS.COM. 111 00:04:26,480 --> 00:04:27,840 SCREENSHARE WON'T BE AVAILABLE 112 00:04:27,840 --> 00:04:29,360 IN THE ZOOM FUNCTION IF YOU WANT 113 00:04:29,360 --> 00:04:31,520 TO SHARE SOMETHING WE ASKED YOU 114 00:04:31,520 --> 00:04:34,960 SEND IT TO THE MEETING 115 00:04:34,960 --> 00:04:37,280 ORGANIZERS WE WILL SHARE SLIDES 116 00:04:37,280 --> 00:04:38,920 WITH ANYONE WHO IS WILLING TO 117 00:04:38,920 --> 00:04:40,760 SHARE THEM. I WILL PAUSE FOR A 118 00:04:40,760 --> 00:04:44,640 MOMENT TO MAKE SURE I DID NOT 119 00:04:44,640 --> 00:04:46,720 MISS ANYTHING. 120 00:04:46,720 --> 00:04:49,600 MA HOG ANY, ARE WE GOOD TO GO? 121 00:04:49,600 --> 00:04:52,840 WE ARE STARTING AT 3:10 BUT IF 122 00:04:52,840 --> 00:04:56,240 SUZANNE IS AVAILABLE, WE CAN GET 123 00:04:56,240 --> 00:04:59,920 STARTED. SUSANA IS AVAILABLE. 124 00:04:59,920 --> 00:05:02,800 ANTHONY, IF YOU WOULD LIKE TO 125 00:05:02,800 --> 00:05:13,320 DISPLAY SUSANA'S SLIDES, PLEASE. 126 00:05:17,040 --> 00:05:18,400 WE CAN BEGIN. SUSANA, YOU WILL 127 00:05:18,400 --> 00:05:20,760 BE SPOTLIGHTED. I WILL GO OFF 128 00:05:20,760 --> 00:05:22,600 CAMERA BUT COME BACK ON. THANKS 129 00:05:22,600 --> 00:05:24,880 VERY MUCH FOR JOINING US TODAY. 130 00:05:24,880 --> 00:05:27,200 PLEASE GO AHEAD AND INTRODUCE 131 00:05:27,200 --> 00:05:27,800 YOURSELF AND BEGIN. 132 00:05:27,800 --> 00:05:30,160 >> THANKS SO MUCH. CAN YOU LET 133 00:05:30,160 --> 00:05:32,640 ME KNOW AND HEAR ME OKAY? 134 00:05:32,640 --> 00:05:33,520 >> I CAN. 135 00:05:33,520 --> 00:05:35,320 >> PERFECT. THANKS SO MUCH. I 136 00:05:35,320 --> 00:05:37,320 WOULD LIKE TO ACKNOWLEDGE LABOR 137 00:05:37,320 --> 00:05:40,240 OVER MANY YEARS OF DEBBIE ON 138 00:05:40,240 --> 00:05:43,480 BEHALF OF HER STILLBORN DAUGHTER 139 00:05:43,480 --> 00:05:46,000 AUTUMN JOY TO PASS FEDERAL 140 00:05:46,000 --> 00:05:49,480 LEGISLATION THE SHINE FOR 141 00:05:49,480 --> 00:05:51,320 FEDERAL ACT. 142 00:05:51,320 --> 00:05:53,800 I'M SUZANNE LESHER AND GLOBAL 143 00:05:53,800 --> 00:05:56,120 STILLBIRTH ADVOCATE AND REASON I 144 00:05:56,120 --> 00:05:58,760 WORK ON STILLBIRTH IS MY FIRST 145 00:05:58,760 --> 00:06:00,120 CHILD WILDER DANNI EL. THIS IS 146 00:06:00,120 --> 00:06:02,360 A PICTURE OF ME VERY PREGNANT 147 00:06:02,360 --> 00:06:05,760 WITH WILDER EXCITED TO BECOME A 148 00:06:05,760 --> 00:06:07,000 FIRST TIME MOTHER. DID 149 00:06:07,000 --> 00:06:10,320 EVERYTHING RIGHT AND WENT TO 150 00:06:10,320 --> 00:06:13,320 PRENATAL APPOINTMENTS GAVE UP 151 00:06:13,320 --> 00:06:15,280 COFFEE AND ALCOHOL AND READIED 152 00:06:15,280 --> 00:06:19,800 THE NURSERY TO WELCOME OUR BABY 153 00:06:19,800 --> 00:06:22,480 HOME. I NOTICED THE BABY 154 00:06:22,480 --> 00:06:24,760 STOPPED MOVING. CALLED MIDWIFE 155 00:06:24,760 --> 00:06:26,640 TOLD ME TO DRINK JUICE TO WAKE 156 00:06:26,640 --> 00:06:28,720 THE BABY UP. HOUR LATER 157 00:06:28,720 --> 00:06:30,440 COULDN'T STANT WAITING ANYMORE 158 00:06:30,440 --> 00:06:31,800 WENT INTO THE HOSPITAL TO MAKE 159 00:06:31,800 --> 00:06:36,120 SURE EVERYTHING WAS OKAY. 160 00:06:36,120 --> 00:06:38,440 MATERNITY FLOOR TECHNICIAN 161 00:06:38,440 --> 00:06:40,480 SMEARED GELL ON MY BELLY TO 162 00:06:40,480 --> 00:06:43,480 LISTEN FOR A HEAT BEAT. I HEARD 163 00:06:43,480 --> 00:06:46,920 STATIC AND KNEW RIGHT AWAY AND 164 00:06:46,920 --> 00:06:48,680 HIT COMMENT HARD WITH MY HAND 165 00:06:48,680 --> 00:06:51,840 AND YELLED WHAT IS GOING ON. HE 166 00:06:51,840 --> 00:06:58,920 WORN BORN JULY 13TH 1999. MY 167 00:06:58,920 --> 00:07:02,480 PREGNANCY WAS NEAR PERFECT. 168 00:07:02,480 --> 00:07:04,600 DESPITE AN AUTOPSY AND EVERY 169 00:07:04,600 --> 00:07:07,640 POSSIBLE TEST NO CAUSE WAS EVER 170 00:07:07,640 --> 00:07:10,800 FOUND FOR WILDER'S DEATH. 171 00:07:10,800 --> 00:07:11,720 PERIONTOLOGIST TOLD US SOMETIMES 172 00:07:11,720 --> 00:07:13,480 THESE THINGS JUST HAPPEN. MY 173 00:07:13,480 --> 00:07:15,800 LIFE IS COMMITTED TO REJECTING 174 00:07:15,800 --> 00:07:18,000 THAT STATEMENT. NEXT SLIDE, 175 00:07:18,000 --> 00:07:18,360 PLEASE. 176 00:07:18,360 --> 00:07:21,400 THERE IS A GREAT DEAL WE CAN AND 177 00:07:21,400 --> 00:07:22,320 MUST ACHIEVE THROUGH RESEARCH. 178 00:07:22,320 --> 00:07:26,040 I HAVE INCLUDED A FEW TOP POINTS 179 00:07:26,040 --> 00:07:28,720 HERE. FIRST, LET'S USE GLOBAL 180 00:07:28,720 --> 00:07:30,880 METRICS ACKNOWLEDGING POOR 181 00:07:30,880 --> 00:07:32,280 PERFORM ANXIETY ON THE GLOBAL 182 00:07:32,280 --> 00:07:35,520 STAGE. IN APPLES TO APPLES 183 00:07:35,520 --> 00:07:38,160 COMPARISON USING WORLD HEALTH 184 00:07:38,160 --> 00:07:39,080 ORGANIZATION DEFINITION AT 185 00:07:39,080 --> 00:07:41,000 STILLBIRTH AT 28 OR MORE WEEKS 186 00:07:41,000 --> 00:07:44,120 AND RECENT GLOBAL STILLBIRTH 187 00:07:44,120 --> 00:07:46,360 DATA ANALYZED BY UNICEF. THE 188 00:07:46,360 --> 00:07:51,200 STIL RATE IS HIGHER THAN OTHER 189 00:07:51,200 --> 00:07:54,120 HIGH INCOME COUNTRIES 190 00:07:54,120 --> 00:07:55,200 NETHERLANDS JAPAN KOREA AND 191 00:07:55,200 --> 00:07:58,520 SPAIN AND WE DON'T HAVE TO 192 00:07:58,520 --> 00:08:00,080 REINVENT THE WHEEL COLLABORATING 193 00:08:00,080 --> 00:08:03,920 WITH TOP PERFORMERS OR STIL 194 00:08:03,920 --> 00:08:06,800 BIRTH PREVENTION AND BEREAVEMENT 195 00:08:06,800 --> 00:08:09,760 CARE WE HAVE ENORMOUS AMOUNT TO 196 00:08:09,760 --> 00:08:11,480 LEARN FROM COLLEAGUES AND FROM 197 00:08:11,480 --> 00:08:13,560 AUSTRALIA WITH WORLD'S 198 00:08:13,560 --> 00:08:15,400 COMPREHENSIVE FULLY GOVERNMENT 199 00:08:15,400 --> 00:08:16,560 FUNDED STILLBIRTH RESEARCH OF 200 00:08:16,560 --> 00:08:21,520 EXCELLENCE AND COUNCIL ON 201 00:08:21,520 --> 00:08:24,040 AUSTRALIAN ABORIGINAL EXPERTISE 202 00:08:24,040 --> 00:08:28,920 AND -- FROM THE UK, A LEADER IN 203 00:08:28,920 --> 00:08:31,960 PARENT INVOLVEMENT IN PERINATAL 204 00:08:31,960 --> 00:08:34,120 AUDIT AND CO-PRODUCTION OF 205 00:08:34,120 --> 00:08:36,120 RESEARCH -- AND FROM CANADA, 206 00:08:36,120 --> 00:08:38,760 WITH EXTENSIVE RESEARCH ON FIRST 207 00:08:38,760 --> 00:08:41,440 NATION STILLBIRTH RESEARCH RISK 208 00:08:41,440 --> 00:08:43,000 FACTORS AND PREVENTION 209 00:08:43,000 --> 00:08:43,760 APPROACHES. 210 00:08:43,760 --> 00:08:45,480 THIRD, LET'S REDEFINE WHAT WE 211 00:08:45,480 --> 00:08:48,120 CONSIDER TO BE PREVENTABLE. 212 00:08:48,120 --> 00:08:50,800 USING 28 WEEK DEFINITION IF US 213 00:08:50,800 --> 00:08:52,680 MATCHED THE LOWEST NATIONAL 214 00:08:52,680 --> 00:08:54,360 STILLBIRTH RATE WHICH WAS IN 215 00:08:54,360 --> 00:08:59,520 JAPAN AT 1.4 STILLBIRTHS PER 216 00:08:59,520 --> 00:09:02,880 TOTAL -- THERE ARE NO KNOWN 217 00:09:02,880 --> 00:09:03,960 BIOLOGICAL FACTORS PREVENTING 218 00:09:03,960 --> 00:09:08,640 OUR ACHIEVING THIS. 4TH, IT IS 219 00:09:08,640 --> 00:09:09,880 CRITICAL TO ACKNOWLEDGE PARENTS 220 00:09:09,880 --> 00:09:12,760 IN EXPERTS IN OUR EXPERIENCE OF 221 00:09:12,760 --> 00:09:15,920 STILLBIRTH CO- -- NORMALIZED 222 00:09:15,920 --> 00:09:18,280 WELCOMING PARENTS AS ALLIES. 223 00:09:18,280 --> 00:09:22,400 4TH, RESEARCH SHOULD FOCUS ON 224 00:09:22,400 --> 00:09:24,000 UNAND UNDERINVESTIGATED AREAS TO 225 00:09:24,000 --> 00:09:25,720 UNCOVER NEW RISK FACTORS 226 00:09:25,720 --> 00:09:28,080 EXPLORING AREAS TO IMPROVE 227 00:09:28,080 --> 00:09:29,960 UNDERSTANDING AND RECENT US 228 00:09:29,960 --> 00:09:32,680 NATIONAL DATA FROM 2020 SHOWED 229 00:09:32,680 --> 00:09:36,120 31% OF STILLBIRTHS HAD NO 230 00:09:36,120 --> 00:09:38,520 IDENTIFIED CAUSE AND PERSISTENT 231 00:09:38,520 --> 00:09:40,080 RACIAL DISPARITIES WHERE THERE 232 00:09:40,080 --> 00:09:41,720 IS DOUBLED RISK OF STIL ABOUT 233 00:09:41,720 --> 00:09:43,680 IRJ IN BLACK AND RECENT FAMILIES 234 00:09:43,680 --> 00:09:47,840 FOR LAST 100 YEARS AND RESEARCH 235 00:09:47,840 --> 00:09:50,960 -- FACTORS UNDER OR UNEXAMINED 236 00:09:50,960 --> 00:09:52,960 CAN HELP TO ADDRESS GAPS AND 237 00:09:52,960 --> 00:09:54,920 SUCH FACTORS RANGE FROM 238 00:09:54,920 --> 00:09:56,600 EPIGENETIC MECHANISMS FROM 239 00:09:56,600 --> 00:09:58,480 UPSTREAM HEALTH SYSTEM AND 240 00:09:58,480 --> 00:10:00,040 STRUCTURAL FACTORS INCLUDING 241 00:10:00,040 --> 00:10:02,440 BIAS AND FORMS OF RACISM AND 242 00:10:02,440 --> 00:10:04,880 FIFTH, IT IS VITAL WE PRIORITIZE 243 00:10:04,880 --> 00:10:06,640 TIMELY AND ACCURATE DATA 244 00:10:06,640 --> 00:10:08,840 COLLECTION FOR INSTANCE APPLYING 245 00:10:08,840 --> 00:10:10,920 LESSONS LEARNED FROM IMPROVING 246 00:10:10,920 --> 00:10:13,440 BIRTH CERTIFICATE DATA TO 247 00:10:13,440 --> 00:10:15,280 ADDRESS POOR FETAL DEATH 248 00:10:15,280 --> 00:10:17,040 CERTIFICATE QUALITY AND 249 00:10:17,040 --> 00:10:18,960 EXTENDING TO MEMBERS FROM 250 00:10:18,960 --> 00:10:20,560 WORKING GROUP FOR YOUR TIME AND 251 00:10:20,560 --> 00:10:23,360 COMMITMENT TO END PREVENTABLE 252 00:10:23,360 --> 00:10:26,880 STILLBIRTHS IN US IS TO WORK 253 00:10:26,880 --> 00:10:32,120 TOGETHER AND THIS IS A VITAL 254 00:10:32,120 --> 00:10:36,960 STEP TOWARDS THAT FUTURE. 255 00:10:36,960 --> 00:10:39,040 >> I APOLOGIZE FOR THAT ALARM 256 00:10:39,040 --> 00:10:41,200 THAT WAS NOT FOR ME BUT FOR YOU 257 00:10:41,200 --> 00:10:43,840 AND WILL TURN IT OFF. THANKS SO 258 00:10:43,840 --> 00:10:47,320 MUCH AND APPRECIATE THE COMMENT 259 00:10:47,320 --> 00:10:52,640 AND MOVE TO SUBMIT 260 00:10:52,640 --> 00:10:53,560 [INDISCERN. 261 00:10:53,560 --> 00:10:55,120 >> THANK YOU SO MUCH. JAY 262 00:10:55,120 --> 00:10:57,000 WILSON IS SUPPOSED TO SPEAK WITH 263 00:10:57,000 --> 00:10:59,600 ME. CAN YOU SPOTLIGHT HER AS 264 00:10:59,600 --> 00:10:59,960 WELL? 265 00:10:59,960 --> 00:11:03,480 >> I CAN, YEAH. 266 00:11:03,480 --> 00:11:04,120 >> THANK YOU. 267 00:11:04,120 --> 00:11:08,080 >> 268 00:11:08,080 --> 00:11:09,920 >> WHILE YOU ARE GET THAT SET UP 269 00:11:09,920 --> 00:11:12,080 I WILL START. I'M EXECUTIVE 270 00:11:12,080 --> 00:11:14,680 DIRECTOR FOR PUSH FOR EMPOWERED 271 00:11:14,680 --> 00:11:17,760 PREGNANCY A RELATIVELY NEW ORG 272 00:11:17,760 --> 00:11:19,720 LAUNCHING ABOUT A YEAR AND A 273 00:11:19,720 --> 00:11:21,600 HALF AGO WITH MEDICAL 274 00:11:21,600 --> 00:11:22,760 PROFESSIONALS AND LEADING 275 00:11:22,760 --> 00:11:24,120 EXPERTS AND RESEARCHERS FROM 276 00:11:24,120 --> 00:11:25,560 AROUND THE COUNTRY AND GLOBE AND 277 00:11:25,560 --> 00:11:29,520 WE HAVE A SINGLE-MINDED MISSION 278 00:11:29,520 --> 00:11:31,400 TO DRIVE DOWN INCIDENCE PROOEF 279 00:11:31,400 --> 00:11:33,760 VENTABLE STILLBIRTH IN THE US BY 280 00:11:33,760 --> 00:11:35,840 ANY MEANS NECESSARY. I'M A LOSS 281 00:11:35,840 --> 00:11:38,960 MORN MY DAUGHTER A- LANA WAS 282 00:11:38,960 --> 00:11:43,360 BORN 2 DAYS BEFORE HER DUE DATE 283 00:11:43,360 --> 00:11:47,240 IN 2013. NEXT TO ME IS MY 284 00:11:47,240 --> 00:11:48,880 HUSBAND. MANY HERE HAVE HEARD 285 00:11:48,880 --> 00:11:50,560 IT ALREADY BUT IF NOT YOU CAN 286 00:11:50,560 --> 00:11:52,120 FIND IT ALL OVER THE INTERNET. 287 00:11:52,120 --> 00:11:54,360 I JUST WANTED TO TAKE THIS 288 00:11:54,360 --> 00:11:56,960 OPPORTUNITY TO REFOCUS THE 289 00:11:56,960 --> 00:12:00,560 CONVERSATION ON MARGINALIZED 290 00:12:00,560 --> 00:12:02,280 FAMILIES AND IN PARTICULAR BLACK 291 00:12:02,280 --> 00:12:04,200 PARENTS BEARING THE BRUNT OF THE 292 00:12:04,200 --> 00:12:07,200 SILENT EPIDEMIC FOR STILLBIRTH 293 00:12:07,200 --> 00:12:11,320 BIRTH. I WOULD LIKE TO 294 00:12:11,320 --> 00:12:14,040 INTRODUCE MY DEAR FRIEND. 295 00:12:14,040 --> 00:12:16,120 >> THANKS SO MUCH, SAM. I 296 00:12:16,120 --> 00:12:17,240 APPRECIATE THE OPPORTUNITY TO 297 00:12:17,240 --> 00:12:19,200 SHARE THIS SPACE WITH YOU. AS 298 00:12:19,200 --> 00:12:21,400 WELL AS GETTING TO LEARN MORE 299 00:12:21,400 --> 00:12:23,880 ABOUT HOW WE CAN ALL BE 300 00:12:23,880 --> 00:12:25,960 PREVENTIVE PARTNERS IN THIS WORK 301 00:12:25,960 --> 00:12:28,080 TOGETHER. AS SAM HAS MENTIONED 302 00:12:28,080 --> 00:12:31,480 I'M JAY WILSON AND FOUNDING 303 00:12:31,480 --> 00:12:33,000 PRESS CEO OF [INDISCERNIBLE] 304 00:12:33,000 --> 00:12:34,880 MOMS AND WE DO WORK AROUND 305 00:12:34,880 --> 00:12:36,280 CREATING MORE OPPORTUNITIES FOR 306 00:12:36,280 --> 00:12:37,920 VISIBILITY FOR MOMS AND WOMEN 307 00:12:37,920 --> 00:12:40,960 AND BIRTHING PEOPLE TO FIND 308 00:12:40,960 --> 00:12:41,960 RESOURCES THEY NEED TO BECOME 309 00:12:41,960 --> 00:12:43,400 BETTER VERSIONS OF THEMSELVES 310 00:12:43,400 --> 00:12:48,440 AND OUTSIDE OF MY ORGANIZATION 311 00:12:48,440 --> 00:12:52,160 MY DRAW TO THIS WORK ACTUALLY 312 00:12:52,160 --> 00:12:54,920 CAME THROUGH MY PERSONAL 313 00:12:54,920 --> 00:12:58,440 EXPERIENCE WITH LOSS. MY SECOND 314 00:12:58,440 --> 00:13:03,440 PREGNANCY WAS A STILLBIRTH AT 22 315 00:13:03,440 --> 00:13:04,120 WEEKS. 316 00:13:04,120 --> 00:13:08,680 MY DAUGHTER NAEMA RENÉ WAS 317 00:13:08,680 --> 00:13:11,000 STILLBORN DUE TO PLACENTAL 318 00:13:11,000 --> 00:13:14,680 ABRUPGS THAT WAS CAUSED BY 319 00:13:14,680 --> 00:13:16,800 SEVERE PREECOLLAPSE YA. WHILE I 320 00:13:16,800 --> 00:13:21,880 HAD KNOWLEDGE ABOUT PREECOLLAPSE 321 00:13:21,880 --> 00:13:25,160 YA PREGNANT PEOPLE BEFORE HER I 322 00:13:25,160 --> 00:13:28,120 ACTUALLY HAD PREECOLLAPSE YA 323 00:13:28,120 --> 00:13:31,360 BEFORE I'M MEDICAL PROFESSIONAL 324 00:13:31,360 --> 00:13:33,680 AND NURSE IN HEALTH AND HOWEVER 325 00:13:33,680 --> 00:13:36,080 DURING MY EXPERIENCE WITH MY 326 00:13:36,080 --> 00:13:38,240 PREGNANCIES ALL OF THEM I WAS 327 00:13:38,240 --> 00:13:40,920 CONSTANTLY SILENCED AND 328 00:13:40,920 --> 00:13:41,920 DISMISSED AND CHAL EFFECTED 329 00:13:41,920 --> 00:13:44,600 WHENEVER I ASKED QUESTIONS OR 330 00:13:44,600 --> 00:13:45,800 WANTED MORE CLARITY AND WHENEVER 331 00:13:45,800 --> 00:13:49,520 I ASKED FOR MORE RESOURCES SO I 332 00:13:49,520 --> 00:13:51,600 COULD MAKE A BETTER MORE 333 00:13:51,600 --> 00:13:52,680 INFORMED DECISION HOW TO MOVE 334 00:13:52,680 --> 00:13:55,840 FORWARD WITH MY PREGNANCIES AND 335 00:13:55,840 --> 00:13:58,560 MY HISTORY HAVING FOUR 336 00:13:58,560 --> 00:14:03,040 PREGNANCIES AND TWO LOSSES IS 337 00:14:03,040 --> 00:14:04,960 UNFORTUNATELY A VERY COMMON ONE 338 00:14:04,960 --> 00:14:06,880 COMING TO BLACK WOMEN. ONE 339 00:14:06,880 --> 00:14:13,200 THING I LEARNED THROUGH WORK -- 340 00:14:13,200 --> 00:14:14,720 IS MOM'S WOMAN AND BIRTHING 341 00:14:14,720 --> 00:14:17,200 PEOPLE WHO LOOK LIKE ME WHO HAVE 342 00:14:17,200 --> 00:14:18,840 EXPERIENCED THIS SAME DISPARITY 343 00:14:18,840 --> 00:14:21,040 TIME AND TIME AGAIN AND ALONG 344 00:14:21,040 --> 00:14:22,960 WITH MY OWN EXPERIENCE LEARNING 345 00:14:22,960 --> 00:14:25,120 THAT WE OFTEN FEEL, WE CAN'T SAY 346 00:14:25,120 --> 00:14:27,640 ANYTHING. NO ONE IS GOING TO 347 00:14:27,640 --> 00:14:29,960 LISTEN. OR, WE JUST SHOULD NOT 348 00:14:29,960 --> 00:14:31,480 SAY ANYTHING BECAUSE NOTHING 349 00:14:31,480 --> 00:14:33,280 WILL CHANGE. SO, I'M GLAD TO BE 350 00:14:33,280 --> 00:14:36,120 HERE AND TO BE PART OF THIS 351 00:14:36,120 --> 00:14:39,280 WORK. I'M SO PROUD OF SAM FOR 352 00:14:39,280 --> 00:14:40,800 CREATING THIS AWESOME SPACE FOR 353 00:14:40,800 --> 00:14:44,040 US TO BRING VISIBILITY TO THIS. 354 00:14:44,040 --> 00:14:45,640 ALSO, TO CREATE MORE 355 00:14:45,640 --> 00:14:47,840 ACCOUNTABILITY IN SPACES THAT 356 00:14:47,840 --> 00:14:49,960 CAN CREATE MACROLEVEL OF CHANGE. 357 00:14:49,960 --> 00:14:51,600 TURNING IT BACK OVER TO YOU, 358 00:14:51,600 --> 00:14:53,560 SAM. THANKS AGAIN FOR SHARING 359 00:14:53,560 --> 00:14:54,680 YOUR PLATFORM WITH ME. 360 00:14:54,680 --> 00:14:56,960 >> THANK YOU JAYE AND FOR ALL 361 00:14:56,960 --> 00:15:00,520 WORK YOU DO. CDC DATA SHOWS IF 362 00:15:00,520 --> 00:15:03,000 WE SIMPLY CLOSE THE GAP BETWEEN 363 00:15:03,000 --> 00:15:04,880 WHITE AND BLACK PARENTS WE WOULD 364 00:15:04,880 --> 00:15:09,080 AVERT 4,000 STILLBIRTH DEATHS 365 00:15:09,080 --> 00:15:12,520 EVERY YEAR IN THE COUNTRY 17% 366 00:15:12,520 --> 00:15:13,720 OVERALL REDISCUSSION IN 367 00:15:13,720 --> 00:15:15,960 STILLBIRTH THAT IS REALLY A 368 00:15:15,960 --> 00:15:18,160 CRISIS AND DUE TO HISTORY OF 369 00:15:18,160 --> 00:15:19,880 RACISM AND COLLECTIVE INABILITY 370 00:15:19,880 --> 00:15:24,160 TO FACE DEATH AND GRIEF, IT IS A 371 00:15:24,160 --> 00:15:25,400 UNIQUELY AMERICAN CRISIS. 372 00:15:25,400 --> 00:15:28,000 IN CASE YOU WERE WONDERING THIS 373 00:15:28,000 --> 00:15:30,000 GRAPHIC BEHIND ME IS NOT 374 00:15:30,000 --> 00:15:32,360 ABSTRACT ART BUT ILLUSTRATION OF 375 00:15:32,360 --> 00:15:34,520 THE DIRE STATE OF STILLBIRTH 376 00:15:34,520 --> 00:15:36,560 PREVENTION IN THE UNITED STATES. 377 00:15:36,560 --> 00:15:40,920 THIS GREEN FIGURE OVER MY 378 00:15:40,920 --> 00:15:43,520 SHOULDER DEPICTS 2016 LANCET 379 00:15:43,520 --> 00:15:47,320 DATA ON REDUCTION OF STILLBIRTH 380 00:15:47,320 --> 00:15:50,320 FROM 49 HIGH INCOME COUNTRIES US 381 00:15:50,320 --> 00:15:54,280 IS TINY LITTLE YELLOW BARK AT 382 00:15:54,280 --> 00:15:57,600 BOTTOM RANKING DISMAL 4 EIGHTH 383 00:15:57,600 --> 00:16:02,600 OUT OF 49 AND PINK PICTURE IS 384 00:16:02,600 --> 00:16:05,400 METRIC -- THE US SHAMEFULLY 385 00:16:05,400 --> 00:16:10,480 AGAIN IF YOU CAN SEE IT RANKS 386 00:16:10,480 --> 00:16:10,720 183RD. 387 00:16:10,720 --> 00:16:12,480 SINCE WORKING GROUP WAS 388 00:16:12,480 --> 00:16:15,520 ANNOUNCED SEPTEMBER 12TH, 2022, 389 00:16:15,520 --> 00:16:18,480 OVER 7200US BABIES HAVE BEEN 390 00:16:18,480 --> 00:16:19,760 BORN STILL. IT DOESN'T HAVE TO 391 00:16:19,760 --> 00:16:22,960 BE THIS WAY. RESEARCH FROM NIH 392 00:16:22,960 --> 00:16:24,320 OWN STILLBIRTH COLLABORATIVE 393 00:16:24,320 --> 00:16:27,640 RESEARCH NETWORK FOUNDED IN 394 00:16:27,640 --> 00:16:31,080 201925% OF US STILLBIRTHS ARE 395 00:16:31,080 --> 00:16:33,640 PREVENTABLE INCLUDING 47% AT 396 00:16:33,640 --> 00:16:35,600 TERM. FROM ZAN INTERNATIONAL 397 00:16:35,600 --> 00:16:38,440 PEERS SHOW THESE ESTIMATES ARE 398 00:16:38,440 --> 00:16:39,840 CONSERVATIVE. STILLBIRTH IN 399 00:16:39,840 --> 00:16:42,560 JAPAN DEFINING STILLBIRTH 400 00:16:42,560 --> 00:16:44,960 BEGINNING OF 22 WEEKS WE WOULD 401 00:16:44,960 --> 00:16:49,040 AVERT UP TO 72% OF STILLBIRTH 402 00:16:49,040 --> 00:16:54,320 DATE. 7200 BABIES IS HARD TO 403 00:16:54,320 --> 00:16:55,800 WRAP YOUR BRAIN AROUND. THESE 404 00:16:55,800 --> 00:16:59,480 ARE TINY HEART WUNZ FOR EACH OF 405 00:16:59,480 --> 00:17:00,880 THE CHILDREN AND WHITE HEARTS 406 00:17:00,880 --> 00:17:03,400 ARE POTENTIALLY PREVENTABLE 407 00:17:03,400 --> 00:17:03,640 DEATHS. 408 00:17:03,640 --> 00:17:06,600 WE HAVE A SAYING IN THE 409 00:17:06,600 --> 00:17:07,880 STILLBIRTH COMMUNITY, A LITTLE 410 00:17:07,880 --> 00:17:09,640 LIFE NOT A LITTLE LOSS. BECAUSE 411 00:17:09,640 --> 00:17:11,840 EACH OF THE HEARTS MIGHT BE 412 00:17:11,840 --> 00:17:16,120 SMALL BUT ARE VALUED BEYOND 413 00:17:16,120 --> 00:17:16,400 MEASURE. 414 00:17:16,400 --> 00:17:18,120 WE MUST NEVER LOSE SIGHT OF THE 415 00:17:18,120 --> 00:17:21,200 FACT WHAT IS AT STAKE HERE IS 416 00:17:21,200 --> 00:17:25,360 LIVES. MY STILLBORN DAUGHTER 417 00:17:25,360 --> 00:17:28,120 AND JAY'S DAUGHTER AND THOUSANDS 418 00:17:28,120 --> 00:17:30,000 LIKE THEM THAT WILL DIE 419 00:17:30,000 --> 00:17:31,000 PREVENTABLE DEATH EVERY YEAR IN 420 00:17:31,000 --> 00:17:32,960 THE COUNTRY UNTIL WE DO 421 00:17:32,960 --> 00:17:34,960 SOMETHING ABOUT IT CONSIDERED 422 00:17:34,960 --> 00:17:36,640 STATISTICALLY RARE SHEER NUMBER 423 00:17:36,640 --> 00:17:39,320 OF STILLBIRTHS IS STAGGERING AND 424 00:17:39,320 --> 00:17:40,880 [INDISCERNIBLE] BROUGHT BY 425 00:17:40,880 --> 00:17:43,040 DEATHS IS UNFATHOMABLE. NUMBERS 426 00:17:43,040 --> 00:17:45,080 ALONE HAVE NOT BEEN ABLE TO 427 00:17:45,080 --> 00:17:46,840 CREATE CHANGE. ONLY PEOPLE 428 00:17:46,840 --> 00:17:53,000 CREATE CHANGE. DR. BIONKY AND 429 00:17:53,000 --> 00:17:54,320 DR. JANE AND DR. READY ALL ON 430 00:17:54,320 --> 00:17:57,520 THE COUNCIL HAVE DEVOTED LIVES 431 00:17:57,520 --> 00:17:58,960 HELPING OTHERS WIELD SCIENCE TO 432 00:17:58,960 --> 00:18:00,920 DO GOOD AND TO BE HEALERS AND IN 433 00:18:00,920 --> 00:18:02,960 THIS MOMENT YOU HAVE A CHOICE 434 00:18:02,960 --> 00:18:04,120 AND OPPORTUNITY TO SEE 435 00:18:04,120 --> 00:18:06,720 STILLBIRTH AS MORE THAN A DATA 436 00:18:06,720 --> 00:18:08,120 COLLECTION PROBLEM AND AFFIRM IT 437 00:18:08,120 --> 00:18:10,960 AS A PUBLIC HEALTH CRISIS IT IS. 438 00:18:10,960 --> 00:18:13,520 WE IMPLORE YOU TO USE YOUR VOICE 439 00:18:13,520 --> 00:18:15,600 AND PRIVILEGE TO WRITE THIS 440 00:18:15,600 --> 00:18:17,400 WRONG TO END PREVENTABLE 441 00:18:17,400 --> 00:18:18,760 STILLBIRTH IF YOU DON'T SPEAK 442 00:18:18,760 --> 00:18:20,120 FOR US AND OUR CHILDREN I DON'T 443 00:18:20,120 --> 00:18:21,520 KNOW WHO WILL. THANK YOU. 444 00:18:21,520 --> 00:18:24,040 >> THANK YOU SAMANTHA. WE 445 00:18:24,040 --> 00:18:26,200 APPRECIATE YOUR COMMENTS. THANK 446 00:18:26,200 --> 00:18:31,600 YOU ALSO TO JAYE FOR YOURS. 447 00:18:31,600 --> 00:18:36,840 MOVING TO MARGORIE VEIL, PLEASE. 448 00:18:36,840 --> 00:18:40,120 REMINDER YOU HAVE THREE MINUTES 449 00:18:40,120 --> 00:18:43,440 TO SPEAK, PLEASE. 450 00:18:43,440 --> 00:18:49,640 MA HOG ANY, IS MARJORIE 451 00:18:49,640 --> 00:18:50,000 AVAILABLE? 452 00:18:50,000 --> 00:18:51,800 >> DOESN'T LOOK LIKE WE HAVE HER 453 00:18:51,800 --> 00:18:52,640 ONLINE TODAY. 454 00:18:52,640 --> 00:18:55,480 >> OKAY. LET ME ASK AND I WILL 455 00:18:55,480 --> 00:18:59,000 KEEP THIS AS A PLACEHOLDER IS 456 00:18:59,000 --> 00:19:00,680 TAMEKA ISAACS ON, PLEASE. 457 00:19:00,680 --> 00:19:02,320 >> YES, MA'AM. 458 00:19:02,320 --> 00:19:06,280 >> ALL RIGHT. TAMEKA, IF I CAN 459 00:19:06,280 --> 00:19:08,040 ASK YOU TO GO NEXT I WOULD I 460 00:19:08,040 --> 00:19:09,480 HAVE MUCH APPRECIATE IT. 461 00:19:09,480 --> 00:19:12,000 >> SURE THING. 462 00:19:12,000 --> 00:19:22,560 >> WE ARE GIVING YOU 5 MINUTES. 463 00:19:23,000 --> 00:19:27,000 >> THANKS SO MUCH. I'M TAMEKA 464 00:19:27,000 --> 00:19:28,520 ISAAC EXECUTIVE DIRECTOR OF 465 00:19:28,520 --> 00:19:30,720 JAYS'S JOURNEY A NON-PROFIT MY 466 00:19:30,720 --> 00:19:32,880 HUSBAND AND I STARTED IN TWENTD 467 00:19:32,880 --> 00:19:35,480 19 TO ADDRESS DISPARITIES OF 468 00:19:35,480 --> 00:19:37,880 MATERNAL AND INFANT HEALTH AND 469 00:19:37,880 --> 00:19:38,920 DON'T WANT TO TALK MUCH ABOUT 470 00:19:38,920 --> 00:19:40,720 THE ORGANIZATION AS MUCH AS I 471 00:19:40,720 --> 00:19:44,320 WANT TO TALK ABOUT JAYS. I 472 00:19:44,320 --> 00:19:47,680 BECAME PREGNANT WITH JAYS 473 00:19:47,680 --> 00:19:50,640 NOVEMBER 27 TAENAT AGE OF 40 AND 474 00:19:50,640 --> 00:19:54,200 TOLD I WAS HIGH RISK OF 475 00:19:54,200 --> 00:19:55,800 PREECOLLAPSE YA. WE TRIED FOR 476 00:19:55,800 --> 00:19:57,200 OVER A YEAR AND BEYOND EXCITE 477 00:19:57,200 --> 00:19:59,400 TODAY WELCOME HIM TO OUR LIFE 478 00:19:59,400 --> 00:20:01,560 AND THROUGHOUT THE COURSE OF MY 479 00:20:01,560 --> 00:20:04,120 PREGNANCY WHICH WAS LIKE I SAID 480 00:20:04,120 --> 00:20:06,920 DOCUMENTED AS HIGH RISK I WAS 481 00:20:06,920 --> 00:20:09,080 GIVEN ZERO URINE TESTS AND ONE 482 00:20:09,080 --> 00:20:12,680 BLOOD TEST ON FIRST DAY OF THIRD 483 00:20:12,680 --> 00:20:15,920 TRIMESTER MAY 14TH 2018 JAYS WAS 484 00:20:15,920 --> 00:20:18,920 PRESENTED WITH INTRAUTERINE 485 00:20:18,920 --> 00:20:21,560 GROWTH RESTRICTION AND AFTER 486 00:20:21,560 --> 00:20:23,360 INCONCLUSIVE ULTRA SOUND WAS 487 00:20:23,360 --> 00:20:25,200 PERFORMED NO ADDITIONAL TESTING 488 00:20:25,200 --> 00:20:27,600 WAS DONE AND MAY 10TH JAYS 489 00:20:27,600 --> 00:20:31,160 FAILED A NONSTRESS TEST AND 490 00:20:31,160 --> 00:20:32,880 AFTER ANOTHER ULTRASOUND 491 00:20:32,880 --> 00:20:35,600 [INDISCERNIBLE] THE CAUSE OF THE 492 00:20:35,600 --> 00:20:38,280 IUGR WAS NEVER DETERMINED OR 493 00:20:38,280 --> 00:20:40,400 MENTIONED AND IN JUST 4 DAYS A 494 00:20:40,400 --> 00:20:42,640 LITTLE OVER -- I WAS A LITTLE 495 00:20:42,640 --> 00:20:44,760 OVER 35 WEEKS AT THIS POINT AND 496 00:20:44,760 --> 00:20:46,200 ABOUT TWO WEEKS BEFORE I WAS 497 00:20:46,200 --> 00:20:49,320 PLANNED TO BE INDUCED I WOKE UP 498 00:20:49,320 --> 00:20:51,680 VOMITING IN THE MIDDLE OF THE 499 00:20:51,680 --> 00:20:53,720 NIGHT AND WAS RUSHED TO THE 500 00:20:53,720 --> 00:20:56,160 HOSPITAL AND LATER TOLD 501 00:20:56,160 --> 00:20:57,840 EMOTIONLESSLY BY THE HOSPITAL 502 00:20:57,840 --> 00:21:02,360 STAFF THAT JAYS HAD PASSED AWAY. 503 00:21:02,360 --> 00:21:03,560 [INDISCERNIBLE] DROM THAT COULD 504 00:21:03,560 --> 00:21:08,120 HAVE BEEN DIAGNOSED THROUGH 505 00:21:08,120 --> 00:21:10,400 URIN 506 00:21:10,400 --> 00:21:12,800 URINARY TEST. -- I CAN BARELY 507 00:21:12,800 --> 00:21:14,400 REMEMBER I TOO ALMOST DIED THAT 508 00:21:14,400 --> 00:21:16,880 DAY. DUE TO THE SEVERITY OF MY 509 00:21:16,880 --> 00:21:19,200 HEALTH SYNDROME I WENT THROUGH 7 510 00:21:19,200 --> 00:21:21,480 SURGERIES WITHIN 45 DAYS 511 00:21:21,480 --> 00:21:24,120 DEVELOPING INFECTIONS THAT 512 00:21:24,120 --> 00:21:26,320 FORCED ME TO MISS JAYS'S 513 00:21:26,320 --> 00:21:28,160 FUNERAL. ONE SIMPLE TEST COULD 514 00:21:28,160 --> 00:21:30,960 HAVE SAVED JAYS'S LIFE 515 00:21:30,960 --> 00:21:33,560 UNFORTUNATELY ACCORDING TO ACOB 516 00:21:33,560 --> 00:21:35,000 URINE PROTEIN TESTING IS NO 517 00:21:35,000 --> 00:21:36,400 LONGER CONSIDERED A BEST 518 00:21:36,400 --> 00:21:38,880 PRACTICE FOR REASONS THAT 519 00:21:38,880 --> 00:21:40,600 INCLUDE AND I QUOTE HEALTH CARE 520 00:21:40,600 --> 00:21:44,120 STAFF WOULD ALSO BENEFIT FROM 521 00:21:44,120 --> 00:21:47,000 ELIMINATING ROUTINE URINE DIP 522 00:21:47,000 --> 00:21:50,560 STICK TESTINGS. NURSES SPEND 523 00:21:50,560 --> 00:21:53,000 NOTABLE AMOUNT OF TIME 524 00:21:53,000 --> 00:21:55,320 THROUGHOUT DAY COLLECTING URINE 525 00:21:55,320 --> 00:21:57,680 SAMPLES SCREENING FOR PROTEIN 526 00:21:57,680 --> 00:21:58,960 AND DISPOSING OF WASTE. I'M 527 00:21:58,960 --> 00:22:00,760 HERE TO TELL YOU THAT NO AMOUNT 528 00:22:00,760 --> 00:22:03,120 OF TIME CAN CHANGE THE IMPACT 529 00:22:03,120 --> 00:22:06,480 THAT JAYS'S PREVENT BABLE DEATH 530 00:22:06,480 --> 00:22:10,840 HAS CHANGED MY ENTIRE FAMILY. 531 00:22:10,840 --> 00:22:16,000 SAM AND JAY SPOKE WE NOT ALONE. 532 00:22:16,000 --> 00:22:18,840 65 FAMILIES ARE EFFECTED BY 533 00:22:18,840 --> 00:22:21,440 STILLBIRTH EACH YEAR. 534 00:22:21,440 --> 00:22:25,200 THE TIME TO END PREVENTABLE 535 00:22:25,200 --> 00:22:28,120 DEATHS IS NOW. I THANK YOU FOR 536 00:22:28,120 --> 00:22:31,720 LETTING ME SHARE JAYS AND OUR 537 00:22:31,720 --> 00:22:34,960 STORY. THANK YOU. 538 00:22:34,960 --> 00:22:40,800 >> THANK YOU SO MUCH, TOMEKA. 539 00:22:40,800 --> 00:22:43,240 WE APPRECIATE YOUR COMMENTS. 540 00:22:43,240 --> 00:22:45,440 MARJORIE VEIL HAS JOINED US. IF 541 00:22:45,440 --> 00:22:47,840 YOU ARE ABLE TO GO AHEAD WITH 542 00:22:47,840 --> 00:22:49,440 YOUR COMMENTS, WE WILL OPEN THE 543 00:22:49,440 --> 00:22:51,440 FLOOR TO YOU FOR THREE MINUTES. 544 00:22:51,440 --> 00:22:53,480 >> THREE MINUTES. THANKS SO 545 00:22:53,480 --> 00:22:54,480 MUCH. I APPRECIATE THE 546 00:22:54,480 --> 00:22:57,840 OPPORTUNITY TO BE ABLE TO SPEAK. 547 00:22:57,840 --> 00:23:00,520 I'M MARJORIE VEIL AND CURRENTLY 548 00:23:00,520 --> 00:23:04,120 LIVE IN BROOKLYN, NEW YORK. MY 549 00:23:04,120 --> 00:23:08,040 STORY UNFORTUNATELY BEGAN OR WAS 550 00:23:08,040 --> 00:23:09,720 18 YEARS AGO. 551 00:23:09,720 --> 00:23:11,440 IT IS SAD FOR ME THAT TO THIS 552 00:23:11,440 --> 00:23:14,200 DAY WE ARE STILL HAVING THE SAME 553 00:23:14,200 --> 00:23:16,800 CONVERSATIONS OVER AND OVER AND 554 00:23:16,800 --> 00:23:18,360 OVER AGAIN. 555 00:23:18,360 --> 00:23:20,480 WHEN 18 YEARS AGO WHEN WE SHOULD 556 00:23:20,480 --> 00:23:22,120 HAVE BEEN EMBARKING ON ONE OF 557 00:23:22,120 --> 00:23:26,480 THE GREATEST TIMES OF OUR LIVES 558 00:23:26,480 --> 00:23:28,960 BECOMING PARENTS FOR THE FIRST 559 00:23:28,960 --> 00:23:31,080 TIME, SOMETHING SO WONDERFUL 560 00:23:31,080 --> 00:23:33,640 BECAME VERY, VERY TRAGIC. I 561 00:23:33,640 --> 00:23:35,920 WANTED TO GIVE BIRTH AT A 562 00:23:35,920 --> 00:23:39,960 BIRTHING CENTER IN A HOSPITAL IN 563 00:23:39,960 --> 00:23:42,000 MANHATTAN. 564 00:23:42,000 --> 00:23:45,160 IT WENT FROM BAD TO WORSE. ONE 565 00:23:45,160 --> 00:23:46,840 OF THE REASONS WHY IS I WASN'T 566 00:23:46,840 --> 00:23:49,400 LISTENED TO. NO ONE WAS 567 00:23:49,400 --> 00:23:50,640 LISTENING TO ME. 568 00:23:50,640 --> 00:23:52,720 NO ONE WAS HEARING ME WHEN I 569 00:23:52,720 --> 00:23:56,000 SAID THAT I NEEDED SUPPORT AND I 570 00:23:56,000 --> 00:23:59,800 NEEDED HELP. AND IT SADLY HAD 571 00:23:59,800 --> 00:24:02,880 TO TAKE A TURN FOR THE WORST FOR 572 00:24:02,880 --> 00:24:04,480 EVERYONE TO BE LIKE, OH, MY 573 00:24:04,480 --> 00:24:06,920 GOSH. WE ARE SO SORRY. SORRY 574 00:24:06,920 --> 00:24:08,960 IS A LITTLE BIT TOO LATE. 575 00:24:08,960 --> 00:24:13,600 AND WITH US, IT TURNS OUT THAT 576 00:24:13,600 --> 00:24:21,160 OUR SON DIED BECAUSE OF 577 00:24:21,160 --> 00:24:22,160 VELEMENTOS CORD INSERTION AND 578 00:24:22,160 --> 00:24:23,880 SOMETHING THAT COULD BE DETECTED 579 00:24:23,880 --> 00:24:26,400 WITH EXTRA CLOSE-UP WITH A 580 00:24:26,400 --> 00:24:26,760 SONOGRAM. 581 00:24:26,760 --> 00:24:29,160 BECAUSE IT IS NOT A PART OF 582 00:24:29,160 --> 00:24:31,520 STANDARD OF CARE, IT WASN'T 583 00:24:31,520 --> 00:24:32,280 DONE. 584 00:24:32,280 --> 00:24:36,080 SO, THEREFORE, A SIMPLE 585 00:24:36,080 --> 00:24:38,200 C-SECTION ALTHOUGH MOST WOMEN 586 00:24:38,200 --> 00:24:39,920 DON'T WANT C-SECTION BUT IT 587 00:24:39,920 --> 00:24:42,640 COULD HAVE PREVENTED THAT. 588 00:24:42,640 --> 00:24:45,120 HONESTLY, I HAD NEVER HEARD OF 589 00:24:45,120 --> 00:24:48,440 THAT CONDITION UNTIL OUR SON 590 00:24:48,440 --> 00:24:51,800 ALEXAY LONDON VAIL PASSED AWAY. 591 00:24:51,800 --> 00:24:55,200 THEREFORE, MY CHARGE AND HOPE IS 592 00:24:55,200 --> 00:24:58,200 THAT WE MAKE STANDARD OF CARE 593 00:24:58,200 --> 00:25:01,680 EXTRA SONOGRAMS TO BE ABLE TO 594 00:25:01,680 --> 00:25:05,280 FIND THESE THINGS AND ALSO TO 595 00:25:05,280 --> 00:25:08,680 FIND -- TO TRACK THROUGH DATA 596 00:25:08,680 --> 00:25:12,920 HOW MANY PREGNANCIES ARE OR HAVE 597 00:25:12,920 --> 00:25:14,120 HAD DEVELOP EMENTOUS INCERTIFY 598 00:25:14,120 --> 00:25:17,080 SHA TO BE ABLE TO PREVENT IT. 599 00:25:17,080 --> 00:25:21,960 THAT IS MY CHARGE FOR YOU ALL. 600 00:25:21,960 --> 00:25:26,000 >> THANK YOU SO MUCH, MARGE. 601 00:25:26,000 --> 00:25:28,080 THANK YOU. SADLY, I'M DOING TOO 602 00:25:28,080 --> 00:25:31,360 MANY BUTTONS OVER HERE. I 603 00:25:31,360 --> 00:25:32,480 APOLOGIZE IF I'M A LITTLE 604 00:25:32,480 --> 00:25:34,520 HESITANT ON THIS BUT THANKS FOR 605 00:25:34,520 --> 00:25:36,040 SHARING YOUR STORY AND YOUR 606 00:25:36,040 --> 00:25:38,680 CHARGE. IF WE CAN GO TO 607 00:25:38,680 --> 00:25:41,560 CHRISTIAN ORTIZ. IS CHRISTIAN 608 00:25:41,560 --> 00:25:44,640 ON THE LINE? 609 00:25:44,640 --> 00:25:49,200 >> I'M HERE. I HAVE A VALENTINA 610 00:25:49,200 --> 00:25:52,120 SHIRT. OKAY. I WILL KEEP -- 611 00:25:52,120 --> 00:25:54,680 >> WE GIVE YOU THREE MINUTES. 612 00:25:54,680 --> 00:25:55,120 THANK YOU. 613 00:25:55,120 --> 00:25:57,960 >> THIS IS A LOT TO UNPACK. I'M 614 00:25:57,960 --> 00:26:00,200 REALLY SORRY TO HEAR ALL OF THE 615 00:26:00,200 --> 00:26:00,520 STORIES. 616 00:26:00,520 --> 00:26:02,320 THIS IS VERY SAD. I WILL KEEP 617 00:26:02,320 --> 00:26:06,920 MY REMARKS BRIEF AND WILL KEEP 618 00:26:06,920 --> 00:26:10,760 MY REMARKS BRIEF AND FROM NEW 619 00:26:10,760 --> 00:26:13,280 YORK CITY AND MY PARTNER 620 00:26:13,280 --> 00:26:15,080 STILLBIRTHED AT TERM LAST 621 00:26:15,080 --> 00:26:16,320 CHRISTMAS AND AMERICAN COLLEGE 622 00:26:16,320 --> 00:26:19,080 OF OBSTETRICS PUBLISHED A PAPER 623 00:26:19,080 --> 00:26:21,400 FOUR YEARS AGO 50 PRSZ OF 624 00:26:21,400 --> 00:26:22,920 STILLBIRTHS ARE PREVENTABLE. 625 00:26:22,920 --> 00:26:24,720 MINE WAS PREVENTABLE. I KNOW 626 00:26:24,720 --> 00:26:26,600 THIS I HAVE CLINICAL REPORTS 627 00:26:26,600 --> 00:26:29,720 FROM EXPERT OBS AND AN AUTOPSY 628 00:26:29,720 --> 00:26:32,280 THIS SERVICE WAS NOT OFFERED TO 629 00:26:32,280 --> 00:26:35,600 ME AND WE PAID THOUSANDS FOR 630 00:26:35,600 --> 00:26:39,000 INDEPENDENT EXPERTS TO LOOK AT 631 00:26:39,000 --> 00:26:40,440 CRYSTAL'S MEDICAL RECORDS TO GET 632 00:26:40,440 --> 00:26:43,000 TO THE BOTTOM OF WHAT HAPPENED 633 00:26:43,000 --> 00:26:46,480 TO MY DAUGHTER TO GAIN CLOSURE 634 00:26:46,480 --> 00:26:51,280 AND THAT VALENTINA'S STUDY COULD 635 00:26:51,280 --> 00:26:56,720 BE USED FOR PREVENTIVE PURPOSES. 636 00:26:56,720 --> 00:26:58,720 [INDISCERNIBLE] MANY PARENTS 637 00:26:58,720 --> 00:27:02,720 DON'T. STILLBIRTH 638 00:27:02,720 --> 00:27:03,360 DISPROPORTIONATELY EFFECTS 639 00:27:03,360 --> 00:27:06,320 PARENTS OF LOW SOCIOECONOMIC 640 00:27:06,320 --> 00:27:09,640 STATUS MANY OF THESE DEATHS ARE 641 00:27:09,640 --> 00:27:10,920 MISIDENTIFIED BECAUSE OF SOURCE 642 00:27:10,920 --> 00:27:13,240 OF OB'S OPINION IN MANY CASE 643 00:27:13,240 --> 00:27:15,440 COULD BE BIAS AND NO THE IN THE 644 00:27:15,440 --> 00:27:18,920 PRESENT SOURCE OF TRUTH AND KNOW 645 00:27:18,920 --> 00:27:21,400 NIH ONCE HAD A GRANT COVERING 646 00:27:21,400 --> 00:27:22,880 PATHOLOGY FOR STILLBIRTHS WHEN 647 00:27:22,880 --> 00:27:24,880 IT WAS OFFERED 70% OF 648 00:27:24,880 --> 00:27:26,840 STILLBIRTHS IN US GOT INDEPEND 649 00:27:26,840 --> 00:27:29,520 YENLT AUTOPSIES AND STILLBIRTH 650 00:27:29,520 --> 00:27:32,120 RATE PER CAPITIA DROPPED WHEN 651 00:27:32,120 --> 00:27:38,040 THAT GRANT EXPIRE PERCENTAGE OF 652 00:27:38,040 --> 00:27:39,960 AUTOPSIES DROPPED TO 30% AND 653 00:27:39,960 --> 00:27:41,400 STILLBIRTHS [INDISCERNIBLE]. IT 654 00:27:41,400 --> 00:27:42,520 IS DIFFICULT FOR RESEARCH 655 00:27:42,520 --> 00:27:43,760 DEVELOPMENT TO GAIN 656 00:27:43,760 --> 00:27:44,960 UNDERSTANDING HOW TO PREVENT 657 00:27:44,960 --> 00:27:47,040 SOMETHING IF THERE IS NO CLEAN 658 00:27:47,040 --> 00:27:49,880 DATA TO DISCERN. THE BODIES ARE 659 00:27:49,880 --> 00:27:51,520 NOT THE PROBLEM. THERE ARE 660 00:27:51,520 --> 00:27:55,200 PLENTY OF BODIES. 22,000 BODIES 661 00:27:55,200 --> 00:27:58,720 A YEAR MORE OR LESS DESPITE US 662 00:27:58,720 --> 00:28:00,440 FERTILITY RATE AT 40 YEAR LOW TO 663 00:28:00,440 --> 00:28:02,600 RESEARCH. THE ISSUE IS THERE IS 664 00:28:02,600 --> 00:28:06,160 NO FUNDING FOR SAID RESEARCH AND 665 00:28:06,160 --> 00:28:08,280 EMPIRICAL EVIDENCE SUGGESTS WHEN 666 00:28:08,280 --> 00:28:11,000 MONEY IS GEARED TOWARDS RESEARCH 667 00:28:11,000 --> 00:28:13,160 AND DEVELOPMENT PREVENTABLE 668 00:28:13,160 --> 00:28:14,400 STILLBIRTHS TREND DOWN IN THE 669 00:28:14,400 --> 00:28:14,760 UNITED STATES. 670 00:28:14,760 --> 00:28:20,120 THAT IS ALL I HAVE TO SAY. 671 00:28:20,120 --> 00:28:23,000 >> CHRISTIAN, THANKS SO MUCH AND 672 00:28:23,000 --> 00:28:26,800 THANKS FOR GIVING US ALSO SUCH A 673 00:28:26,800 --> 00:28:28,680 POIGNANT STORY. 674 00:28:28,680 --> 00:28:31,920 SO, IF I CAN, I WILL BE MOVING 675 00:28:31,920 --> 00:28:36,120 TO SABRINA. I HOPE I'M SAYING 676 00:28:36,120 --> 00:28:39,960 YOUR NAME CORRECTLY. IF NOT 677 00:28:39,960 --> 00:28:42,080 PLEASE CORRECT ME WHEN I 678 00:28:42,080 --> 00:28:45,480 INTRODUCE YOU. SABRINA TATE 679 00:28:45,480 --> 00:28:49,480 WILL JOIN US. MAHOGANY, IS 680 00:28:49,480 --> 00:28:50,520 SABRINA AVAILABLE? 681 00:28:50,520 --> 00:28:58,800 >> I DO NOT SEE SABRINA ON. 682 00:28:58,800 --> 00:29:00,080 [INDISCERNIBLE] SABRINA IS ON. 683 00:29:00,080 --> 00:29:02,000 I THINK SABRINA IS ON. 684 00:29:02,000 --> 00:29:04,080 >> GREAT. SABRINA, IF YOU CAN 685 00:29:04,080 --> 00:29:06,440 COME OFF MUTE, I WILL YIELD TO 686 00:29:06,440 --> 00:29:08,760 YOU FOR THREE MINUTES. 687 00:29:08,760 --> 00:29:16,120 PLEASE IF IT IS SABERNA, I 688 00:29:16,120 --> 00:29:16,560 APOLOGIZE. 689 00:29:16,560 --> 00:29:22,200 >> [INDISCERNIBLE]. 690 00:29:22,200 --> 00:29:23,000 >> OKAY. 691 00:29:23,000 --> 00:29:33,520 >> SHE MIGHT BE HAVING AUDIO 692 00:29:34,240 --> 00:29:36,040 ISSUES POSSIBLY. SHE IS NO 693 00:29:36,040 --> 00:29:36,400 LONGER ON. 694 00:29:36,400 --> 00:29:40,600 >> OKAY. SO, MAY I ASK IF 695 00:29:40,600 --> 00:29:42,640 IVELKA. PLEASE, AGAIN, ACCEPT 696 00:29:42,640 --> 00:29:45,320 MY APOLOGIES ON PRONUNCIATION OF 697 00:29:45,320 --> 00:29:49,720 NAME AND CORRECT ME, PLEASE. 698 00:29:49,720 --> 00:29:52,320 MAGDALENA REYES, IF YOU ARE 699 00:29:52,320 --> 00:29:54,200 AVAILABLE, WE WOULD LOVE TO OPEN 700 00:29:54,200 --> 00:29:54,800 THE FLOOR TO YOU. 701 00:29:54,800 --> 00:29:58,080 >> THANK YOU SO MUCH. I AM 702 00:29:58,080 --> 00:29:59,320 AVAILABLE. CAN YOU HEAR ME? 703 00:29:59,320 --> 00:30:01,920 >> THANK YOU. YES. WE CAN. 704 00:30:01,920 --> 00:30:03,080 PLEASE BEGIN. 705 00:30:03,080 --> 00:30:08,760 >> OKAY. HI. MY NAME IS 706 00:30:08,760 --> 00:30:11,000 MAGDALENA REYES A NEW YORK 707 00:30:11,000 --> 00:30:14,000 NATIVE BORN IN THE BRONX AND 708 00:30:14,000 --> 00:30:17,000 TRAUMA INFORMED FULL SPECTRUM 709 00:30:17,000 --> 00:30:19,160 BIRTH AND DEATH DOULA AND BRAIN 710 00:30:19,160 --> 00:30:21,200 SPOTTING PRACTITIONER AND NEW 711 00:30:21,200 --> 00:30:23,440 YORK AMBASSADOR FOR COUNT THE 712 00:30:23,440 --> 00:30:27,200 KICKS. TRAUMA INFORMED BIRTH 713 00:30:27,200 --> 00:30:29,920 DOULA CHILD BIRTH EDUCATOR AND 714 00:30:29,920 --> 00:30:32,120 NEW YORK AMBASSADOR FOR COUNT 715 00:30:32,120 --> 00:30:34,000 THE KICKS I'M PRESENT IN THE 716 00:30:34,000 --> 00:30:35,040 COMMUNITY AND GIVE INFORMATION 717 00:30:35,040 --> 00:30:38,640 TO SUPPORT AND INFORMATION TO 718 00:30:38,640 --> 00:30:39,040 EMM 719 00:30:39,040 --> 00:30:42,200 EMPOWER PEOPLE AND SUPPORT THAT 720 00:30:42,200 --> 00:30:44,920 FAMILIES ARE NO THE ALONE IN 721 00:30:44,920 --> 00:30:46,920 THIS BEAUTIFUL PROCESS OF BIRTH 722 00:30:46,920 --> 00:30:48,600 AND LET THEM KNOW STAGES AND 723 00:30:48,600 --> 00:30:52,360 WHAT A DOULA IS AND EQUIP THEM 724 00:30:52,360 --> 00:30:54,040 WITH EVIDENCE BASED APP CALLED 725 00:30:54,040 --> 00:30:56,240 COUNT THE KICKS THIS APP WAS 726 00:30:56,240 --> 00:30:57,760 CREATED LIKE I SAID EVIDENCE 727 00:30:57,760 --> 00:30:59,800 BASED RESEARCH DEMONSTRATING 728 00:30:59,800 --> 00:31:02,280 REDUCTION IN STILLBIRTH BY 729 00:31:02,280 --> 00:31:04,120 TEACHING PREGNANT WOMEN HOW TO 730 00:31:04,120 --> 00:31:06,120 MONITOR FETAL MOVEMENT DURING 731 00:31:06,120 --> 00:31:08,840 THE 3RD TRIMESTER OF PREGNANCY 732 00:31:08,840 --> 00:31:11,000 DOING KICK COUNTS DISPLAYING IT 733 00:31:11,000 --> 00:31:13,920 ON DAILY BASIS RECORDING BABY'S 734 00:31:13,920 --> 00:31:16,880 MOVEMENT AND TRACKS CHANGES OVER 735 00:31:16,880 --> 00:31:19,520 TIME AND REMINDS THEM TO COUNT 736 00:31:19,520 --> 00:31:23,000 BABY'S KINGS EVERY DAY AND PRINT 737 00:31:23,000 --> 00:31:24,920 OUT A REPORT TO GIVE THEIR 738 00:31:24,920 --> 00:31:26,800 DOCTORS HAVING THIS INFORMATION 739 00:31:26,800 --> 00:31:28,480 AND SUPPORT BRINGS EASE TO 740 00:31:28,480 --> 00:31:30,960 PARENTS. WE KNOW DURING A 741 00:31:30,960 --> 00:31:32,760 PREGNANCY CERTAIN ANXIETIES 742 00:31:32,760 --> 00:31:36,440 ARISE IN BOTH PARENTS WHICH IS 743 00:31:36,440 --> 00:31:37,720 COMMON, YOU KNOW? 744 00:31:37,720 --> 00:31:41,040 AND TO NATAL ANXIETY PARENTS 745 00:31:41,040 --> 00:31:43,280 FEEL ANXIOUS ABOUT BABY'S 746 00:31:43,280 --> 00:31:45,280 WELFARE AND SEEK FREQUENT 747 00:31:45,280 --> 00:31:47,520 REASSURANCE IS MY BABY HEALTHY 748 00:31:47,520 --> 00:31:49,360 AND DEVELOPING NORMALLY AND 749 00:31:49,360 --> 00:31:51,120 MOVING AND TOOLS LIKE COUNT THE 750 00:31:51,120 --> 00:31:54,680 KICKS AND HAVING A DOULA HELP 751 00:31:54,680 --> 00:31:55,920 PARENTS HAVE EASE. 752 00:31:55,920 --> 00:31:58,040 HOWEVER, WHEN THERE IS A LOSS, I 753 00:31:58,040 --> 00:32:01,760 HAVE TO PUT ON MY DEATH DOULA 754 00:32:01,760 --> 00:32:03,760 HAT AND BRAINSPOTING 755 00:32:03,760 --> 00:32:05,640 PRACTITIONER HAT. IT SEEMS IN A 756 00:32:05,640 --> 00:32:08,120 SPACE LIKE THIS, PEOPLE QUICKLY 757 00:32:08,120 --> 00:32:11,760 FORGET WHAT TO SAY, WHAT TO DO, 758 00:32:11,760 --> 00:32:14,960 AND TO UNDERSTAND THAT IT IS A 759 00:32:14,960 --> 00:32:17,560 TRAUMATIC EVENT. 760 00:32:17,560 --> 00:32:19,640 IT IS NECESSARY TO RECOGNIZE 761 00:32:19,640 --> 00:32:20,960 PERINATAL LOSS SUCH AS 762 00:32:20,960 --> 00:32:23,520 STILLBIRTH AS A TRAUMATIC EVENT. 763 00:32:23,520 --> 00:32:26,280 ALL OF US SEE THAT AS 764 00:32:26,280 --> 00:32:27,720 PROFESSIONALS WE KNOW THAT 765 00:32:27,720 --> 00:32:28,720 TRAUMA CHANGES THE BRAIN. WE 766 00:32:28,720 --> 00:32:30,560 WOND ERR WHAT IS GOING ON WITH 767 00:32:30,560 --> 00:32:32,760 THESE PARENTS AND HOW ARE THEY 768 00:32:32,760 --> 00:32:34,400 FEELING AND I CAN SHARE WITH YOU 769 00:32:34,400 --> 00:32:36,880 A LITTLE BIT FROM THE CLIENT'S 770 00:32:36,880 --> 00:32:41,000 THAT COME TO HAVE SERVICES WITH 771 00:32:41,000 --> 00:32:44,120 ME. THEY FEEL STUCK. THEY HAVE 772 00:32:44,120 --> 00:32:46,600 DIFFICULTIES KNOWING HOW TO MOVE 773 00:32:46,600 --> 00:32:48,240 ON FOLLOWING A LOSS AND MANY 774 00:32:48,240 --> 00:32:50,240 TIMES MORE OFTEN THAN NOT, GRIEF 775 00:32:50,240 --> 00:32:52,920 IS EMBODIED FOR YEARS. 776 00:32:52,920 --> 00:32:54,400 STILLBIRTH IS TRAUMATIC AND I 777 00:32:54,400 --> 00:32:56,400 HAVE TO SAY IT AGAIN THAT 778 00:32:56,400 --> 00:32:58,560 STILLBIRTH IS A TRAUMATIC EVENT 779 00:32:58,560 --> 00:33:00,320 AND SHOULD BE TREATED JUST LIKE 780 00:33:00,320 --> 00:33:02,400 ANY OTHER TRAUMA. WE NEED TO 781 00:33:02,400 --> 00:33:04,280 GIVE FULL SUPPORT TO PARENTS AND 782 00:33:04,280 --> 00:33:07,600 NEED TO BE THERE WITH THEM. IT 783 00:33:07,600 --> 00:33:10,160 IS IMPORTANT THAT WE ACKNOWLEDGE 784 00:33:10,160 --> 00:33:11,480 THEIR EMOTIONAL TRAUMA 785 00:33:11,480 --> 00:33:13,840 IMMEDIATELY DURING AND IN THE 786 00:33:13,840 --> 00:33:16,120 YEARS FOLLOWING PERINATAL LOSS. 787 00:33:16,120 --> 00:33:19,720 WHEN WE SIT HERE AND THINK ABOUT 788 00:33:19,720 --> 00:33:22,800 HOW TRAUMATIC THE LOSS OF A 789 00:33:22,800 --> 00:33:26,200 CHILD IS, IT IS THE LOSS OF A 790 00:33:26,200 --> 00:33:29,880 LOVED ONE AND BABY AND THIS 791 00:33:29,880 --> 00:33:31,080 TRAUMATIC EVENT AFFECTS BLACK 792 00:33:31,080 --> 00:33:34,240 WOMEN THE MOST, 1 IN 96 OF THEIR 793 00:33:34,240 --> 00:33:36,720 BIRTHS ENDS IN STILLBIRTH AND 794 00:33:36,720 --> 00:33:39,440 DECADES AND DECADES OF RESEARCH 795 00:33:39,440 --> 00:33:43,040 INDICATE THAT THIS SERIOUS US 796 00:33:43,040 --> 00:33:44,600 PUBLIC HEALTH PROBLEM INVOLVES 797 00:33:44,600 --> 00:33:47,760 STRUCTURAL RACISM. IT HAS A 798 00:33:47,760 --> 00:33:50,280 NEGATIVE EFFECT ON MINDS AND 799 00:33:50,280 --> 00:33:53,000 BODIES OF ALL RACIAL GROUPS, 800 00:33:53,000 --> 00:33:54,000 YES. 801 00:33:54,000 --> 00:33:57,840 BUT ESPECIALLY BLACK WOMEN AND 802 00:33:57,840 --> 00:33:59,560 HISPANIC WOMEN LIKE MYSELF COME 803 00:33:59,560 --> 00:34:02,120 IN A STRONG SECOND COMPARED TO 804 00:34:02,120 --> 00:34:02,280 -- 805 00:34:02,280 --> 00:34:03,840 >> THANK YOU. 806 00:34:03,840 --> 00:34:06,320 >> DOMINANT CULTURE, FOLKS. 807 00:34:06,320 --> 00:34:09,480 PLEASE HELP US STOP THESE 808 00:34:09,480 --> 00:34:10,560 PREVENTABLE STILLBIRTHS. THANK 809 00:34:10,560 --> 00:34:12,920 YOU. WITH THAT I YIELD. 810 00:34:12,920 --> 00:34:17,000 >> THANK YOU SO MUCH MRS. REYES, 811 00:34:17,000 --> 00:34:26,440 I APPRECIATE. 812 00:34:26,440 --> 00:34:29,000 >> YOU ARE MUTED. 813 00:34:29,000 --> 00:34:32,800 >> THAT DOESN'T HELP. DOES IT? 814 00:34:32,800 --> 00:34:34,840 >> SABRINA DID COME BACK. 815 00:34:34,840 --> 00:34:36,280 >> OKAY. 816 00:34:36,280 --> 00:34:38,720 >> I SENT HER A MESSAGE AND I'M 817 00:34:38,720 --> 00:34:40,200 TRYING TO SEE IF SHE IS ABLE TO 818 00:34:40,200 --> 00:34:42,240 -- SHE IS NOT IN THE COUNTRY 819 00:34:42,240 --> 00:34:43,640 RIGHT NOW AND BELIEVE THAT COULD 820 00:34:43,640 --> 00:34:44,720 BE THE ISSUE. 821 00:34:44,720 --> 00:34:44,960 >> OKAY. 822 00:34:44,960 --> 00:34:53,520 >> SABRINA, IF YOU ARE ABLE TO 823 00:34:53,520 --> 00:34:54,520 MUTE. 824 00:34:54,520 --> 00:34:58,080 >> I APOLOGIZE. TECHNOLOGY IS 825 00:34:58,080 --> 00:35:00,080 NOT ALWAYS SEAMLESS. PLEASE 826 00:35:00,080 --> 00:35:03,120 BEAR WITH US. MAHOGANY, LET'S 827 00:35:03,120 --> 00:35:05,680 SEE IF WE CAN GET SABRINA TO 828 00:35:05,680 --> 00:35:07,480 MESSAGE AND SEE AND I WILL PAUSE 829 00:35:07,480 --> 00:35:09,480 AFTER THE NEXT PRESENTER IF THAT 830 00:35:09,480 --> 00:35:10,000 IS POSSIBLE? 831 00:35:10,000 --> 00:35:13,040 >> YES. I WILL ASK HER TO DIAL 832 00:35:13,040 --> 00:35:13,640 IN. 833 00:35:13,640 --> 00:35:16,120 >> THANK YOU SO MUCH. 834 00:35:16,120 --> 00:35:22,240 SO, I WILL NOW TURN TO CATHERINE 835 00:35:22,240 --> 00:35:29,080 HYDE HENSLEY. I BELIEVE I SEE 836 00:35:29,080 --> 00:35:30,800 YOU ON AND WILL YIELD TO YOU FOR 837 00:35:30,800 --> 00:35:32,800 THREE MINUTES. 838 00:35:32,800 --> 00:35:35,480 >> THANK YOU. IN NOVEMBER 2006 839 00:35:35,480 --> 00:35:37,280 WHILE MY COMMUNITY CELEBRATED 840 00:35:37,280 --> 00:35:38,920 THE FEAST OF ALL SAINTS I 841 00:35:38,920 --> 00:35:41,040 LABORED AND DELIVERED MY 842 00:35:41,040 --> 00:35:45,480 STILLBORN BABY. HELEN WAS 7 843 00:35:45,480 --> 00:35:47,600 POUNDS, 6 OUNCES AND 38 WEEKS OF 844 00:35:47,600 --> 00:35:49,360 BEAUTIFUL BABY. WE WERE THREE 845 00:35:49,360 --> 00:35:53,000 DAYS AWAY FROM OUR SCHEDULED 846 00:35:53,000 --> 00:35:53,400 C-SECTION. 847 00:35:53,400 --> 00:35:55,000 DAVE AND I LEFT THE HOSPITAL 848 00:35:55,000 --> 00:35:58,680 WITH EMPTY ARMS. WE RECEIVED A 849 00:35:58,680 --> 00:36:00,280 CERTIFICATE OF FETAL DEMISE IN 850 00:36:00,280 --> 00:36:03,200 THE MAILBOX. AT MY 6-WEEK 851 00:36:03,200 --> 00:36:05,760 FOLLOW UP MY NURSE ASKED WITH 852 00:36:05,760 --> 00:36:08,920 JOY SO HOW IS THE NEW BABY 853 00:36:08,920 --> 00:36:10,280 DOING? SHE HAD NOT READ MY 854 00:36:10,280 --> 00:36:12,840 CHART. AFTER THE FUNERAL, THE 855 00:36:12,840 --> 00:36:14,160 COMMUNITY RETURNED TO THEIR 856 00:36:14,160 --> 00:36:16,080 NORMAL LIFE WHILE WE FACED 857 00:36:16,080 --> 00:36:18,760 STIGMA, ISOLATION, AND FEELINGS 858 00:36:18,760 --> 00:36:21,720 OF FAILURE MARKED BY STILLBIRTH. 859 00:36:21,720 --> 00:36:24,080 I RECEIVED FALSE EDUCATION 860 00:36:24,080 --> 00:36:25,720 REGARDING MY MILK SUPPLY AND I 861 00:36:25,720 --> 00:36:29,000 WAS ENGORGED FOR THREE WEEKS. 862 00:36:29,000 --> 00:36:31,760 I HAD SEVERE POSTPARTUM 863 00:36:31,760 --> 00:36:33,800 DEPRESSION AND PTSD AND 864 00:36:33,800 --> 00:36:36,120 STRUGGLED TO CARE FOR MY TWO 865 00:36:36,120 --> 00:36:37,920 CHILDREN. I LOOKED FOR MENTAL 866 00:36:37,920 --> 00:36:39,680 HEALTH SUPPORT AND THERE WAS 867 00:36:39,680 --> 00:36:40,880 LITTLE TO BE FOUND. 868 00:36:40,880 --> 00:36:43,360 NO ONE CONSIDERED MY MENTAL 869 00:36:43,360 --> 00:36:48,080 HEALTH NOT EVEN A PHQ9 OR 870 00:36:48,080 --> 00:36:50,600 EDDENBURG WAS DONE. STILLBIRTH 871 00:36:50,600 --> 00:36:52,280 BLINDSIDED US. AS WE LEANED I 872 00:36:52,280 --> 00:36:54,720 LEARNED ABOUT THE FREQUENCY, THE 873 00:36:54,720 --> 00:36:56,640 PREVALENCE, AND THE PAINFUL 874 00:36:56,640 --> 00:36:58,800 STIGMA. LOSING HELEN IMPACTED 875 00:36:58,800 --> 00:37:01,200 OUR MARRIAGE, OUR FINANCES, 876 00:37:01,200 --> 00:37:03,800 CAREERS, AND ESPECIALLY OUR 877 00:37:03,800 --> 00:37:04,120 PARENTING. 878 00:37:04,120 --> 00:37:10,800 I AM A BEREAVED MOTHER, 2006, A 879 00:37:10,800 --> 00:37:12,800 BEREAVED SISTER 2016 AND 880 00:37:12,800 --> 00:37:15,680 BEREAVED DAUGHTER 2018. I LEAN 881 00:37:15,680 --> 00:37:18,800 IN TO THE GRIEF. IT FUELS MY 882 00:37:18,800 --> 00:37:20,880 PASSION FOR MATERNAL INFANT 883 00:37:20,880 --> 00:37:23,320 THERAPY AS A LICENSED CLINICAL 884 00:37:23,320 --> 00:37:26,600 MENTAL HEALTH COUNSELOR. I ASK 885 00:37:26,600 --> 00:37:29,240 YOU TO CONSIDER THAT BLACK'S 886 00:37:29,240 --> 00:37:31,960 2020 RESEARCH REPORTS THAT STIL 887 00:37:31,960 --> 00:37:34,640 BIRTH SETS IN MOTION A COMPLEX 888 00:37:34,640 --> 00:37:36,360 TRAUMA RESPONSE WITH 889 00:37:36,360 --> 00:37:38,120 IMPLICATIONS FOR FUTURE 890 00:37:38,120 --> 00:37:39,160 CHILDBEARING, PARENTING AND 891 00:37:39,160 --> 00:37:41,560 OTHER CHILDREN AND INTIMATE 892 00:37:41,560 --> 00:37:42,440 RELATIONSHIPS AND PHYSICAL 893 00:37:42,440 --> 00:37:45,520 EMOTIONAL HEALTH AND REMIND YOU 894 00:37:45,520 --> 00:37:48,960 JOE AN'S 2010 RESEARCH DESCRIBES 895 00:37:48,960 --> 00:37:50,600 TRAUMATIZING ASPECTS OF 896 00:37:50,600 --> 00:37:52,560 STILLBIRTH THAT INCREASES A 897 00:37:52,560 --> 00:37:54,920 WOMAN'S RISK FOR ADVERSE LONG 898 00:37:54,920 --> 00:37:56,680 TERM SOCIAL AND PSYCHOLOGICAL 899 00:37:56,680 --> 00:37:58,040 OUTCOMES AND LET'S ASK OURSELVES 900 00:37:58,040 --> 00:38:00,120 WHAT WE CAN DO TO REDUCE 901 00:38:00,120 --> 00:38:02,000 STILLBIRTH AND WHAT HAS WORKED 902 00:38:02,000 --> 00:38:03,120 WELL IN OUR GLOBAL COMMUNITY AND 903 00:38:03,120 --> 00:38:05,640 I ASK YOU TO LISTEN TO THE 904 00:38:05,640 --> 00:38:07,920 FAMILIES IMPACTED BY STILLBIRTH 905 00:38:07,920 --> 00:38:10,240 AS WE AIM TO BE PART OF THE 906 00:38:10,240 --> 00:38:13,680 PARADIGM SHIFT WE NEED TO MAKE 907 00:38:13,680 --> 00:38:15,840 SYSTEMATIC CHANGES THROUGH 908 00:38:15,840 --> 00:38:17,520 PREVENTION USING SAFER BABY 909 00:38:17,520 --> 00:38:19,000 BUNDLES LEANING INTO THE 910 00:38:19,000 --> 00:38:21,640 RESEARCH STILLBIRTH CENTERS FOR 911 00:38:21,640 --> 00:38:22,280 RESEARCH EXCELLENCE BECAUSE ONLY 912 00:38:22,280 --> 00:38:25,560 THROUGH EDUCATION AWARENESS 913 00:38:25,560 --> 00:38:27,040 CAMPAIGNS AND PREVENTION CAN WE 914 00:38:27,040 --> 00:38:29,560 REDUCE THE DISPARITIES. THANK 915 00:38:29,560 --> 00:38:29,760 YOU. 916 00:38:29,760 --> 00:38:33,000 >> CATHERINE, THANK YOU SO MUCH. 917 00:38:33,000 --> 00:38:35,040 VERY MUCH APPRECIATE YOUR 918 00:38:35,040 --> 00:38:36,840 COMMENT. I JUST WANT TO PAUSE 919 00:38:36,840 --> 00:38:38,440 AND ALSO TO SAY THAT I WANT TO 920 00:38:38,440 --> 00:38:39,960 THANK ALL OF YOU FOR SHARING 921 00:38:39,960 --> 00:38:41,960 YOUR STORIES AND SHARING STORIES 922 00:38:41,960 --> 00:38:44,440 OF YOUR BABIES AND FAMILIES SO 923 00:38:44,440 --> 00:38:48,600 PUBLICLY AND THINK IT IS SO VERY 924 00:38:48,600 --> 00:38:52,400 POWERFUL AND VERY A REALLY 925 00:38:52,400 --> 00:38:55,160 MEANINGFUL WAY FOR US TO BE IN 926 00:38:55,160 --> 00:38:56,720 TOUCH WITH MUCH WHAT WE HEARD 927 00:38:56,720 --> 00:38:58,440 OVER THE COURSE OF THE RESEARCH 928 00:38:58,440 --> 00:39:00,080 DISCUSSION AND AS WE HEARD FROM 929 00:39:00,080 --> 00:39:01,680 FAMILIES THROUGHOUT IT WAS VERY 930 00:39:01,680 --> 00:39:03,440 MUCH TOP OF MIND FOR US. I DO 931 00:39:03,440 --> 00:39:06,240 JUST WANT TO TAKE A MOMENT TO BE 932 00:39:06,240 --> 00:39:08,480 GRATEFUL RIGHT NOW. I WANT TO 933 00:39:08,480 --> 00:39:10,600 THEN CHECK BACK IN TO SEE IF ONE 934 00:39:10,600 --> 00:39:12,880 OF THE PARTICIPANTS HAS BEEN 935 00:39:12,880 --> 00:39:18,760 ABLE TO JOIN. MAHOGANY, YES? 936 00:39:18,760 --> 00:39:21,520 IF JUST SAY WE ARE WORKING ON 937 00:39:21,520 --> 00:39:23,640 IT. WE CAN -- WE WILL MOVE TO 938 00:39:23,640 --> 00:39:26,080 THE NEXT PRESENTER AND I 939 00:39:26,080 --> 00:39:29,960 APPRECIATE YOUR EFFORTS. 940 00:39:29,960 --> 00:39:31,160 IS CHRISTINE CHANG WITH US? 941 00:39:31,160 --> 00:39:31,840 >> YES. 942 00:39:31,840 --> 00:39:34,640 >> I WOULD LIKE TO INVITE 943 00:39:34,640 --> 00:39:36,480 CHRISTINE TO SPEAK FOR THE NEXT 944 00:39:36,480 --> 00:39:39,280 SPEAKER. CHRISTINE, THANK YOU 945 00:39:39,280 --> 00:39:41,000 FOR JOINING US. I WILL YIELD TO 946 00:39:41,000 --> 00:39:42,680 YOU FOR THREE MINUTES. 947 00:39:42,680 --> 00:39:42,960 THANK YOU. 948 00:39:42,960 --> 00:39:45,640 >> THANK YOU. HELLO. THANKS 949 00:39:45,640 --> 00:39:47,720 FOR THE OPPORTUNITY TO SPEAK 950 00:39:47,720 --> 00:39:51,200 TODAY I'M CHRISTINE CHANG AND A 951 00:39:51,200 --> 00:39:53,000 HEALTH CARE PROFESSIONAL AND 952 00:39:53,000 --> 00:39:55,120 HOLD MASTERS IN PUBLIC HEALTH 953 00:39:55,120 --> 00:39:56,800 FROM COLLUMAR UNIVERSITY AND 954 00:39:56,800 --> 00:39:57,960 SPEND MY PROFESSIONAL CAREER 955 00:39:57,960 --> 00:40:00,440 LOOKING FOR WAYS TO IMPROVE THE 956 00:40:00,440 --> 00:40:02,520 HEALTH CARE SYSTEM HOW 957 00:40:02,520 --> 00:40:05,840 ELECTRONIC RECORDS CAN BE 958 00:40:05,840 --> 00:40:09,160 IMPROVED AND TAKING PATIENT 959 00:40:09,160 --> 00:40:11,880 ADVOCACY MODELS DR. FAUCI USED 960 00:40:11,880 --> 00:40:14,920 -- CARRYING FOUR FULL TERM 961 00:40:14,920 --> 00:40:15,640 PREGNANCIES AND BROUGHT THREE 962 00:40:15,640 --> 00:40:20,120 HOME IT IS APPARENT TO ME TO 963 00:40:20,120 --> 00:40:21,840 IMPROVE PREGNANCY OUTCOMES IS 964 00:40:21,840 --> 00:40:23,640 NECESSARY AND PROFESSIONAL 965 00:40:23,640 --> 00:40:25,320 BACKGROUND MEANT GOING INTO 966 00:40:25,320 --> 00:40:27,280 FIRST PREG NANNY UNDERSTOOD 967 00:40:27,280 --> 00:40:28,960 HEALTH CARE AND KNEW I NEED 968 00:40:28,960 --> 00:40:32,120 TODAY ADVOCATE FOR MYSELF AND 969 00:40:32,120 --> 00:40:34,040 KNEW HOW THE HEALTH SYSTEM 970 00:40:34,040 --> 00:40:38,560 WORKED AND DID MY RESEARCH AFTER 971 00:40:38,560 --> 00:40:43,040 A SEEMINGLY LOW RISK PREGNANCY 972 00:40:43,040 --> 00:40:46,960 WAS TOLD MY BABY HAD NO HEART 973 00:40:46,960 --> 00:40:50,600 BEAT. I BLACKED OUT AS I 974 00:40:50,600 --> 00:40:52,520 HEMORRHAGED WHILE DELIVERING HER 975 00:40:52,520 --> 00:40:55,160 PLACENTA. CAME TO ROOM WAS 976 00:40:55,160 --> 00:40:56,920 SILENT AND HUSBAND BY MY SIDE 977 00:40:56,920 --> 00:40:59,440 HOLDING OUR BABY GIRL IN HIS 978 00:40:59,440 --> 00:41:01,280 ARMS WOULD HAVE PREFERRED TO 979 00:41:01,280 --> 00:41:06,160 HAVE BABY IN NICU OR C-SECTION. 980 00:41:06,160 --> 00:41:08,560 I WOULD HAVE PREFERRED IT WAS MY 981 00:41:08,560 --> 00:41:10,000 LIFE RATHER THAN MY BABIES OVER 982 00:41:10,000 --> 00:41:12,840 THE FOLLOWING WEEKS AND MONTHS 983 00:41:12,840 --> 00:41:14,360 AS INITIAL SHOCK WORE OFF I HAD 984 00:41:14,360 --> 00:41:16,480 SO MANY QUESTIONS HOW MANY 985 00:41:16,480 --> 00:41:18,240 STILLBIRTHS OCCURRED AT 38 WEEKS 986 00:41:18,240 --> 00:41:20,120 WHAT HAPPENED? SOME ANSWERS 987 00:41:20,120 --> 00:41:22,160 CAME QUICKLY. CHANGE IN FETAL 988 00:41:22,160 --> 00:41:23,720 MOVEMENT WAS A WARNING SIGN I 989 00:41:23,720 --> 00:41:26,880 DIDN'T KNOW TO LOOK FOR BABY'S 990 00:41:26,880 --> 00:41:28,120 MOVEMENTS CHANGED TWICE OVER 991 00:41:28,120 --> 00:41:31,960 COURSE OF NUMBER OF DAYS NURSES 992 00:41:31,960 --> 00:41:34,920 I SPOKE TO DIDN'T TAKE IT 993 00:41:34,920 --> 00:41:39,000 SERIOUSLY AND MET MOMS ONLINE 994 00:41:39,000 --> 00:41:41,040 AFTERWARDS -- OTHER ANSWERS FOR 995 00:41:41,040 --> 00:41:43,840 ME TOOK MORE TIME. 5 YEARS 996 00:41:43,840 --> 00:41:47,040 LATER I FOUND OUT MADISON HAD AN 997 00:41:47,040 --> 00:41:48,800 EXTREMELY SMALL PLACENTA WASN'T 998 00:41:48,800 --> 00:41:51,680 ABLE TO TAKE MATERNITY LEAVE 999 00:41:51,680 --> 00:41:54,160 DIDN'T HAVE A BABY TO BOND WITH 1000 00:41:54,160 --> 00:41:56,400 WHEN I WENT BACK TO WORK I BURST 1001 00:41:56,400 --> 00:42:00,480 INTO TEARS EVERY TIME I SAW THE 1002 00:42:00,480 --> 00:42:04,080 WORD HOSPITAL. MY PTSD TURNED 1003 00:42:04,080 --> 00:42:05,440 INTO POSTPARTUM ANXIETY AFTER 1004 00:42:05,440 --> 00:42:07,560 BIRTH OF SUBSEQUENT LIVING 1005 00:42:07,560 --> 00:42:09,000 CHILDREN. I MENTALLY NOTED TIME 1006 00:42:09,000 --> 00:42:10,960 IT WAS IN CASE IT WAS LAST TIME 1007 00:42:10,960 --> 00:42:13,440 HE MIGHT BE ALIVE. MY QUESTIONS 1008 00:42:13,440 --> 00:42:17,240 STILL REMAINED DI HAVE A SMALL 1009 00:42:17,240 --> 00:42:20,680 PLACENTA WITH ALL MY PREGNANCIES 1010 00:42:20,680 --> 00:42:23,280 -- MATERNAL AND CHILD HEALTH 1011 00:42:23,280 --> 00:42:25,000 INCLUDES STILLBIRTH THAT OCCURS 1012 00:42:25,000 --> 00:42:30,160 MORE THAN SIDS AND MORE THAN 1013 00:42:30,160 --> 00:42:30,840 MATERNAL DEATHS. 1014 00:42:30,840 --> 00:42:32,680 WE NEED BETTER DATA COLLECTION 1015 00:42:32,680 --> 00:42:34,280 AND RESEARCH AND NEED TO 1016 00:42:34,280 --> 00:42:36,080 CONTINUE TO LISTEN LIKE YOU ARE 1017 00:42:36,080 --> 00:42:37,960 TODAY TO PATIENTS WHO EXPERIENCE 1018 00:42:37,960 --> 00:42:40,320 THIS LOSS EVEN IF UNCOMFORTABLE 1019 00:42:40,320 --> 00:42:43,680 AND SET A GOAL OF PRODUCING 1020 00:42:43,680 --> 00:42:45,800 STILLBIRTH RATES 10 TO 20% IN 5 1021 00:42:45,800 --> 00:42:48,080 TO 10 YEARS PICK YOUR NUMBER AND 1022 00:42:48,080 --> 00:42:50,800 EDUCATE PATIENT AND PROVIDERS 1023 00:42:50,800 --> 00:42:52,240 EVERY NIGHT MY KIDS SAY 1024 00:42:52,240 --> 00:42:54,520 GOODNIGHT TO EACH OTHER AND TO 1025 00:42:54,520 --> 00:42:57,680 THEIR SISTER MADISON. TELLING 1026 00:42:57,680 --> 00:43:02,040 YOU THIS SO NOBODY ELSE HAS TO 1027 00:43:02,040 --> 00:43:03,720 EXPERIENCE A PREVENTABLE 1028 00:43:03,720 --> 00:43:04,760 STILLBIRTH. THANK YOU. 1029 00:43:04,760 --> 00:43:06,640 >> THANK YOU FOR YOUR STORY. WE 1030 00:43:06,640 --> 00:43:09,080 APPRECIATE YOU SHARING IT. 1031 00:43:09,080 --> 00:43:12,720 NOW, WHAT I WOULD LIKE TO DO 1032 00:43:12,720 --> 00:43:14,000 MAHOGANY, I WILL JUST IF YOU ARE 1033 00:43:14,000 --> 00:43:17,200 STILL WORKING ON IT, YOU CAN SAY 1034 00:43:17,200 --> 00:43:18,840 YES. 1035 00:43:18,840 --> 00:43:19,480 >> YES. 1036 00:43:19,480 --> 00:43:20,480 >> OKAY. 1037 00:43:20,480 --> 00:43:24,760 >> WHAT I WILL DO IS IF MICHELLE 1038 00:43:24,760 --> 00:43:26,840 HARRIS AND AGAIN CORRECT ME IF I 1039 00:43:26,840 --> 00:43:31,320 SAY NAMES CORRECTLY WHO IS 1040 00:43:31,320 --> 00:43:32,120 REPRESENTING ELIJAH'S PURPOSE 1041 00:43:32,120 --> 00:43:35,000 AND ORGANIZATION WOULD BE 1042 00:43:35,000 --> 00:43:36,640 AVAILABLE, WE CAN BEGIN. 1043 00:43:36,640 --> 00:43:38,960 >> HI. HELLO. CAN EVERYONE 1044 00:43:38,960 --> 00:43:40,120 HEAR ME? 1045 00:43:40,120 --> 00:43:41,640 MICHELLE HAD A WORK OBLIGATION 1046 00:43:41,640 --> 00:43:43,160 AND COULDN'T MAKE IT AND ASKED 1047 00:43:43,160 --> 00:43:46,000 ME TO SPEAK ON HER BEHALF IN 1048 00:43:46,000 --> 00:43:47,000 ELIJAH'S WAY. 1049 00:43:47,000 --> 00:43:50,800 >> OKAY. WHO ARE WE SPEAKING 1050 00:43:50,800 --> 00:43:51,480 WITH? 1051 00:43:51,480 --> 00:43:52,600 >> KENYA KIRKMAN. 1052 00:43:52,600 --> 00:43:55,000 >> OKAY, KENYA. OKAY. GO 1053 00:43:55,000 --> 00:43:55,240 AHEAD. 1054 00:43:55,240 --> 00:43:57,440 >> OKAY. THANKS SO MUCH. 1055 00:43:57,440 --> 00:43:58,440 >> THANK YOU. 1056 00:43:58,440 --> 00:44:01,680 >> SO, YES. HI. I'M KENYA 1057 00:44:01,680 --> 00:44:04,680 KIRKMAN AND I'M SPEAKING ON 1058 00:44:04,680 --> 00:44:07,120 MICHELLE AND HER ORGANIZATION 1059 00:44:07,120 --> 00:44:09,800 ELIJAH'S PURPOSE AN ORGANIZATION 1060 00:44:09,800 --> 00:44:10,520 PROVIDING RESOURCES AND SUPPORT 1061 00:44:10,520 --> 00:44:14,560 TO FAMILIES SUFFERING FROM 1062 00:44:14,560 --> 00:44:17,000 PREGNANCY INFANT LOSS. 2014 1063 00:44:17,000 --> 00:44:21,000 MICHELLE WAS PREGNANT WITH TWINS 1064 00:44:21,000 --> 00:44:22,960 AND -- SHE WASN'T ABLE TO GET 1065 00:44:22,960 --> 00:44:24,360 APPOINTMENT UNTIL 28 WEEKS AT 1066 00:44:24,360 --> 00:44:25,720 THAT APPOINTMENT SHE WAS 1067 00:44:25,720 --> 00:44:28,840 INFORMED ELIJAH HAD PASSED AWAY 1068 00:44:28,840 --> 00:44:31,760 3 WEEKS PRIOR PLACED ON BED REST 1069 00:44:31,760 --> 00:44:34,280 DUE TO MANY COMPLICATIONS DUE TO 1070 00:44:34,280 --> 00:44:37,480 LACK OF PROPER PRENATAL CARE 1071 00:44:37,480 --> 00:44:40,120 ALICIA HAD TO GO THREE WEEKS 1072 00:44:40,120 --> 00:44:42,920 WITH DECREASED BROTHER ELIJAH IN 1073 00:44:42,920 --> 00:44:46,040 THE WOMB AND FINANCIAL COST OF 1074 00:44:46,040 --> 00:44:47,560 BURYING ELIJAH WAS A BURDEN AT 1075 00:44:47,560 --> 00:44:50,360 THE TIME. 2020 ELIJAH'S PURPOSE 1076 00:44:50,360 --> 00:44:52,080 WAS BORN IN WHICH IT IS AN 1077 00:44:52,080 --> 00:44:53,760 ORGANIZATION NOW THAT PROVIDES 1078 00:44:53,760 --> 00:44:57,000 FINANCIAL SUPPORT TO FAMILIES 1079 00:44:57,000 --> 00:44:58,800 EXPERIENCING PREGNANCY AND 1080 00:44:58,800 --> 00:45:00,920 INFANT LOSS. SIMILAR TO 1081 00:45:00,920 --> 00:45:04,080 MICHELLE I EXPERIENCED HORRIBLE 1082 00:45:04,080 --> 00:45:06,560 BIRTHING EXPERIENCE I WAS 1083 00:45:06,560 --> 00:45:08,240 PREGNANT WITH TWIN BOYS THEY ARE 1084 00:45:08,240 --> 00:45:09,560 NOT HERE PHYSICALLY I DIDN'T 1085 00:45:09,560 --> 00:45:12,080 HAVE HAPPY ENDING I DREAMED OF 1086 00:45:12,080 --> 00:45:14,320 AND HOPED FOR AND I WENT TO 1087 00:45:14,320 --> 00:45:16,920 EVERY DOCTOR'S APPOINTMENT 1088 00:45:16,920 --> 00:45:18,120 FOLLOWED EVERY DIRECTIVE AND 1089 00:45:18,120 --> 00:45:20,120 DECIDED NO THE TO WORK I WANTED 1090 00:45:20,120 --> 00:45:22,320 A SMOOTH PREGNANCY NOTHING 1091 00:45:22,320 --> 00:45:24,640 PREPARED ME FOR AUGUST 19TH 2019 1092 00:45:24,640 --> 00:45:27,240 TREATMENT I ENDURED IN INITIAL 1093 00:45:27,240 --> 00:45:29,000 HOSPITAL WAS UNPLEASANT. I 1094 00:45:29,000 --> 00:45:30,400 DIDN'T FEEL THE SITUATION 1095 00:45:30,400 --> 00:45:32,600 MATTERED TO THEM OR WHAT I WAS 1096 00:45:32,600 --> 00:45:34,640 SAYING WAS BEING TAKEN SERIOUS I 1097 00:45:34,640 --> 00:45:37,120 FELT UNHEARD AND MISGUIDED LED 1098 00:45:37,120 --> 00:45:39,000 ME TO SWITCH HOSPITALS IN MIDST 1099 00:45:39,000 --> 00:45:41,800 OF MY PREG NANNY BY THAT TIME MY 1100 00:45:41,800 --> 00:45:44,560 TWINS WERE BORN STILL AND TOLD 1101 00:45:44,560 --> 00:45:46,040 CAUSE WAS INCOMPETENT CERVIX 1102 00:45:46,040 --> 00:45:49,120 THAT IMPACTS BLACK AND BROWN 1103 00:45:49,120 --> 00:45:51,800 MOTHERS AS ALARMING RATES. 1104 00:45:51,800 --> 00:45:55,520 IT HAS IMPACTED ME AND MY FAMILY 1105 00:45:55,520 --> 00:45:57,080 EMOTIONALLY MORE THAN ANYTHING 1106 00:45:57,080 --> 00:45:59,400 TO THE POINT I HONESTLY AM 1107 00:45:59,400 --> 00:46:00,760 TERRIFIED TO CONCEIVE OR EVEN 1108 00:46:00,760 --> 00:46:02,560 THINK ABOUT STARTING A FAMILY. 1109 00:46:02,560 --> 00:46:04,000 EXCUSE ME. 1110 00:46:04,000 --> 00:46:07,440 AS OF TODAY, IN NUMEROUS WAYS 1111 00:46:07,440 --> 00:46:10,160 AND PROBABLY SHARED IN 1112 00:46:10,160 --> 00:46:13,680 STATISTICWISE 1 IN 107 PREGN 1113 00:46:13,680 --> 00:46:15,760 PREGNANCIES IN US END IN 1114 00:46:15,760 --> 00:46:19,360 STILLBIRTH EQUIVALENT TO THREE 1115 00:46:19,360 --> 00:46:20,280 KINDERGARTEN CLASSES OR SCHOOL 1116 00:46:20,280 --> 00:46:22,240 BUS FULL OF CHILDREN EVERY DAY 1117 00:46:22,240 --> 00:46:26,320 OR IN AN AIRPLANE EVERY WEEK 1118 00:46:26,320 --> 00:46:30,760 MATERNAL MORBIDITY 1119 00:46:30,760 --> 00:46:32,640 [INDISCERNIBLE] TO ANY OTHER 1120 00:46:32,640 --> 00:46:34,400 RATES OF WOMEN. BLACK WOMEN AND 1121 00:46:34,400 --> 00:46:37,640 BLACK FAMILIES ARE SUFFERING. 1122 00:46:37,640 --> 00:46:41,040 30% OF US STILLBIRTHS EVEN 1123 00:46:41,040 --> 00:46:43,240 THOUGH THEY COUNT FOR 2% OF THE 1124 00:46:43,240 --> 00:46:45,200 POPULATION. NO WAY IN 2019 WITH 1125 00:46:45,200 --> 00:46:47,600 MY TWO SISTERS AND I ALL BEING 1126 00:46:47,600 --> 00:46:49,400 PREGNANT IN THE SAME YEAR WUB OF 1127 00:46:49,400 --> 00:46:52,720 THE THREE PREGNANCIES ENDED 1128 00:46:52,720 --> 00:46:53,720 UNFAVORABLY I HAVE MANY THOUGHTS 1129 00:46:53,720 --> 00:46:56,120 WHETHER THIS IS BECAUSE I HAD MY 1130 00:46:56,120 --> 00:46:57,640 PREGNANCY IN NEW YORK AND THEY 1131 00:46:57,640 --> 00:47:00,080 HAD THEM IN STATE OF DMROR DAH. 1132 00:47:00,080 --> 00:47:02,720 IN NEW YORK 900 STILLBIRTHS ON 1133 00:47:02,720 --> 00:47:04,160 AVERAGE EACH YEAR IN NEW YORK 1134 00:47:04,160 --> 00:47:05,960 CITY SPECIFICALLY AND THIS RATE 1135 00:47:05,960 --> 00:47:08,480 OF 1 IN -- THIS IS A RATE OF 1 1136 00:47:08,480 --> 00:47:11,880 IN 125 PREGNANCIES THAT IS 33% 1137 00:47:11,880 --> 00:47:13,960 WORSE THAN NATIONAL US AND 1138 00:47:13,960 --> 00:47:17,760 BREAKDOWN FOR NEW YORK CITY 1139 00:47:17,760 --> 00:47:18,360 FETAL DEATHS DOESN'T INCLUDE 1140 00:47:18,360 --> 00:47:20,600 [INDISCERNIBLE] SO WAS NOT 1141 00:47:20,600 --> 00:47:21,560 AVAILABLE. NEEDLESS TO SAY I 1142 00:47:21,560 --> 00:47:23,680 WOULD LIKE TO SEE CHANGE IN 1143 00:47:23,680 --> 00:47:26,480 AFTER CARE FOR STILLBIRTH 1144 00:47:26,480 --> 00:47:27,120 PARENTS ESPECIALLY FOR 1145 00:47:27,120 --> 00:47:29,840 STILLBIRTH PARENTS OF COLOR. 1146 00:47:29,840 --> 00:47:32,800 OFTEN TIMES I DON'T WANT TO SAY 1147 00:47:32,800 --> 00:47:34,560 A COMMUNITY BUT OFTEN TIMES A 1148 00:47:34,560 --> 00:47:36,440 PLACE OF LONELINESS THAT HAPPENS 1149 00:47:36,440 --> 00:47:38,240 TO USING AS ALARMING RATES AND 1150 00:47:38,240 --> 00:47:41,000 THERE IS AN EXPECTATION OF JUST 1151 00:47:41,000 --> 00:47:43,960 MOVE ON. 1152 00:47:43,960 --> 00:47:46,840 JUST THE POST PREGNANCY VISITS 1153 00:47:46,840 --> 00:47:49,160 ARE SUB-PAR AND TRYING TO GET 1154 00:47:49,160 --> 00:47:52,080 ANSWERS WHILE GRIEVING AND 1155 00:47:52,080 --> 00:47:53,720 SHOULD BE AFTER CARE TEAM FOR 1156 00:47:53,720 --> 00:47:56,680 STILLBIRTH PARENTS AND BETTER 1157 00:47:56,680 --> 00:47:59,880 STANDARD AND PROTOCOL SO PARENTS 1158 00:47:59,880 --> 00:48:02,120 ARE PROVIDED WITH RESOURCES TO 1159 00:48:02,120 --> 00:48:04,120 MOVE FORWARD AND WHAT CAN BE 1160 00:48:04,120 --> 00:48:05,920 DONE MOVING FORWARD FOR 1161 00:48:05,920 --> 00:48:07,160 PREVENTION. I THANK YOU FOR 1162 00:48:07,160 --> 00:48:08,160 YOUR TIME AND OPPORTUNITY TO 1163 00:48:08,160 --> 00:48:13,080 SPEAK ON BEHALF OF MY BOYS AIDEN 1164 00:48:13,080 --> 00:48:15,880 AND CARTER. 1165 00:48:15,880 --> 00:48:19,120 >> THANK YOU FOR SPEAKING ON 1166 00:48:19,120 --> 00:48:20,960 BEHALF OF ELIJAH'S WAY AND 1167 00:48:20,960 --> 00:48:23,040 APPRECIATE YOU ALL AND YOU 1168 00:48:23,040 --> 00:48:25,440 WILLING TO STEP IN. SABRINA 1169 00:48:25,440 --> 00:48:27,880 TATE HAS BEEN ABLE TO GET AUDIO 1170 00:48:27,880 --> 00:48:31,120 AVAILABLE SO THINK IF WE CAN GET 1171 00:48:31,120 --> 00:48:33,520 SABRINA TO JOIN US. 1172 00:48:33,520 --> 00:48:35,240 >> HI. CAN YOU HEAR ME? 1173 00:48:35,240 --> 00:48:36,040 >> WE CAN. 1174 00:48:36,040 --> 00:48:36,760 >> P PERFECT. 1175 00:48:36,760 --> 00:48:38,600 >> YOU SAID IT RIGHT THE FIRST 1176 00:48:38,600 --> 00:48:42,040 TIME. SABRINA. I'M SABRINA 1177 00:48:42,040 --> 00:48:43,320 TATE. IT IS JUST SPELLED 1178 00:48:43,320 --> 00:48:43,600 DIFFERENT. 1179 00:48:43,600 --> 00:48:47,680 >> ALL RIGHT. THANK YOU, 1180 00:48:47,680 --> 00:48:48,400 SABRINA. GO AHEAD. 1181 00:48:48,400 --> 00:48:50,800 >> NO PROBLEM. SORRY FOR THE 1182 00:48:50,800 --> 00:48:52,440 CONNECTION ISSUE I'M ON VACATION 1183 00:48:52,440 --> 00:48:55,040 WITH MY FAMILY I'M SABRINA TATE 1184 00:48:55,040 --> 00:48:57,040 AND FROM NEW JERSEY AND 1185 00:48:57,040 --> 00:48:59,840 REPRESENT MY DAUGHTER LILY WHO 1186 00:48:59,840 --> 00:49:02,360 WAS BORN STILLBORN IN 2020. 1187 00:49:02,360 --> 00:49:05,880 MY PREGNANCY WAS A NORMAL 1188 00:49:05,880 --> 00:49:06,680 PREGNANCY. 1189 00:49:06,680 --> 00:49:10,360 AFTER MY ROUTINE 20 WEEK CHECKUP 1190 00:49:10,360 --> 00:49:13,800 MY CERVIX OPENED FOR ME DOCTORS 1191 00:49:13,800 --> 00:49:15,760 DIDN'T DO DUE DILIGENCE THEY 1192 00:49:15,760 --> 00:49:18,760 NEEDED TO DO IN ORDER TO PREVENT 1193 00:49:18,760 --> 00:49:21,600 HER OR MY CERVIX OPENING 1194 00:49:21,600 --> 00:49:24,000 INITIALLY 80% OF STILLBIRTHS 1195 00:49:24,000 --> 00:49:26,920 TAKING PLACE IN PREGNANCIES WITH 1196 00:49:26,920 --> 00:49:29,040 NO KNOWN RISK FACTORS PRESENTED 1197 00:49:29,040 --> 00:49:34,360 IN MY CASE HEALTHY 40-WEEK 1198 00:49:34,360 --> 00:49:36,080 PREGNANCY AFTER GETTING PREGNANT 1199 00:49:36,080 --> 00:49:39,680 WITH MY DAUGHTER AND AFTER I 1200 00:49:39,680 --> 00:49:41,760 EXPERIENCED INCOMPETENT CERVIX 1201 00:49:41,760 --> 00:49:44,120 AND NEXT TIME WE CAN DO THIS OR 1202 00:49:44,120 --> 00:49:47,000 THIS VERSUS HAVING A ROUTINE 1203 00:49:47,000 --> 00:49:49,560 CHECK OF A CERVIX AT 13 WEEKS OR 1204 00:49:49,560 --> 00:49:52,120 WHATEVER THE REQUIREMENTS AFTER 1205 00:49:52,120 --> 00:49:54,680 YOU EXPERIENCED INCOMPETENT 1206 00:49:54,680 --> 00:49:57,320 CERVIX AND YOU KNOW FOR ME THERE 1207 00:49:57,320 --> 00:50:00,680 WAS NO REAL ANSWERS JUST THESE 1208 00:50:00,680 --> 00:50:02,600 THINGS JUST HAPPEN AND 1209 00:50:02,600 --> 00:50:04,040 INSENSITIVITY FROM DOCTORS 1210 00:50:04,040 --> 00:50:05,600 CAUSED ME TO END UP LEAVING THE 1211 00:50:05,600 --> 00:50:09,480 HOSPITAL AND GOING TO A 1212 00:50:09,480 --> 00:50:10,600 DIFFERENT HOSPITAL WHERE 1213 00:50:10,600 --> 00:50:11,240 [INDISCERNIBLE] THERE WASN'T 1214 00:50:11,240 --> 00:50:13,120 MUCH THEY COULD DO BY THAT 1215 00:50:13,120 --> 00:50:17,120 POINT. IT HAD GOTTEN TOO FAR 1216 00:50:17,120 --> 00:50:18,800 AND LOTS OF TIMES THESE 1217 00:50:18,800 --> 00:50:20,960 PREGNANCIES FALL THROUGH THE 1218 00:50:20,960 --> 00:50:23,400 CRACKS AND PREVIOUS PERSON SPOKE 1219 00:50:23,400 --> 00:50:24,840 WITH [INDISCERNIBLE] I'M AT THAT 1220 00:50:24,840 --> 00:50:26,920 POINT I'M FEARFUL. I KNOW THE 1221 00:50:26,920 --> 00:50:29,040 GOOD AND NOT SO GOOD THINGS THAT 1222 00:50:29,040 --> 00:50:32,440 HAPPEN WITH PREGNANCIES. 1223 00:50:32,440 --> 00:50:33,640 BECAUSE I'M MORESO NERVOUS FOR 1224 00:50:33,640 --> 00:50:35,960 THE CARE THAT I WOULD BE GETTING 1225 00:50:35,960 --> 00:50:37,480 BECAUSE I HAVE EXPERIENCED THIS 1226 00:50:37,480 --> 00:50:40,400 I KNOW IT COULD HAPPEN BUT WOULD 1227 00:50:40,400 --> 00:50:42,720 NEED SOMEONE THAT WOULD BE ABLE 1228 00:50:42,720 --> 00:50:45,200 TO REALLY PUT THAT TIME AND CARE 1229 00:50:45,200 --> 00:50:47,520 INTO MYSELF ONCE I DO BECOME 1230 00:50:47,520 --> 00:50:49,120 PREGNANT. LIKE I SAID, I 1231 00:50:49,120 --> 00:50:51,280 BELIEVE THAT IF THERE IS -- YOU 1232 00:50:51,280 --> 00:50:52,600 KNOW, SOMETHING PUT IN PLACE 1233 00:50:52,600 --> 00:50:54,960 WHERE EVERY -- REGARDLESS OF YOU 1234 00:50:54,960 --> 00:50:57,160 HAVING A HEALTHY CERVIX OR NOT 1235 00:50:57,160 --> 00:50:59,520 THAT SOMETHING IS IN PLACE TO 1236 00:50:59,520 --> 00:51:01,960 CHECK EVERYONE'S SERVICE 1237 00:51:01,960 --> 00:51:04,200 SHOULDN'T HAVE TO WAIT UNTIL 1238 00:51:04,200 --> 00:51:06,400 SOMEBODY EXPERIENCES LOSS TO 1239 00:51:06,400 --> 00:51:08,080 CHECK CERVIX. THAT IS WHAT I 1240 00:51:08,080 --> 00:51:10,200 HAVE TO SHARE AND THANK YOU 1241 00:51:10,200 --> 00:51:11,560 SAMANTHA FOR PUTTING THIS 1242 00:51:11,560 --> 00:51:13,760 TOGETHER AND THANK YOU FOR YOUR 1243 00:51:13,760 --> 00:51:14,280 TIME. 1244 00:51:14,280 --> 00:51:17,080 >> SABRINA, THANK YOU SO MUCH 1245 00:51:17,080 --> 00:51:20,120 AND WE VERY MUCH APPRECIATE YOUR 1246 00:51:20,120 --> 00:51:20,440 COMMENT. 1247 00:51:20,440 --> 00:51:24,640 NOW I WILL TURN TO ERICA BAILEY. 1248 00:51:24,640 --> 00:51:27,640 ERICA, ARE YOU AVAILABLE? 1249 00:51:27,640 --> 00:51:30,320 >> SHE HAS AN EMERGENCY. SHE IS 1250 00:51:30,320 --> 00:51:32,920 ACTUALLY NOT ABLE TO SPEAK 1251 00:51:32,920 --> 00:51:33,160 TODAY. 1252 00:51:33,160 --> 00:51:34,720 >> OKAY. THANK YOU FOR LETTING 1253 00:51:34,720 --> 00:51:37,000 ME KNOW THAT. I APPRECIATE IT. 1254 00:51:37,000 --> 00:51:41,320 I HOPE EVERYTHING IS OKAY. 1255 00:51:41,320 --> 00:51:47,040 WITH THAT THEN, I WILL ASK IF 1256 00:51:47,040 --> 00:51:48,720 CATHERINE COX HAS JOINED US. 1257 00:51:48,720 --> 00:51:49,240 >> I'M HERE. 1258 00:51:49,240 --> 00:51:50,960 >> CATHERINE, I WILL RECOGNIZE 1259 00:51:50,960 --> 00:51:54,040 YOU NOW FOR THREE MINUTES. 1260 00:51:54,040 --> 00:51:55,600 PLEASE PROCEED AND THANK YOU FOR 1261 00:51:55,600 --> 00:51:56,320 JOINING TODAY. 1262 00:51:56,320 --> 00:52:00,760 >> THANK YOU VERY MUCH. I'M 1263 00:52:00,760 --> 00:52:03,080 CATHERINE COX AND LIKE MANY LOSS 1264 00:52:03,080 --> 00:52:07,200 MOMS WAYS HIGH RISK PREGNANCY. 1265 00:52:07,200 --> 00:52:10,240 CONCEIVED SON THROUGH IVF38 1266 00:52:10,240 --> 00:52:12,520 YEARS OLD AND CONTROLLED 1267 00:52:12,520 --> 00:52:14,800 HYPERTENSION MY PREGNANCY WAS 1268 00:52:14,800 --> 00:52:16,320 PERFECT AND EVERY VISIT PASSED 1269 00:52:16,320 --> 00:52:19,960 FLYING COLORS TWOOND 8 WEEKS 1270 00:52:19,960 --> 00:52:22,080 WEEKLY NONSTRESS TEST ENDED WE 1271 00:52:22,080 --> 00:52:25,440 IS PERFECT 38 WEEKS GOT COVID 1272 00:52:25,440 --> 00:52:29,400 MILD ONE NIGHT HAD SPOTTING MILD 1273 00:52:29,400 --> 00:52:31,200 CONTRACTIONS DOCTORS FOUND BLOOD 1274 00:52:31,200 --> 00:52:34,200 CLOT IN CERVIX. I WAS KEPT IN 1275 00:52:34,200 --> 00:52:36,160 HOSPITAL FOR FIVE DAYS. FIVE 1276 00:52:36,160 --> 00:52:38,040 DAYS HE WAS PERFECT AND BLOOD 1277 00:52:38,040 --> 00:52:39,800 CLOT WASN'T MENTIONED AGAIN AND 1278 00:52:39,800 --> 00:52:40,720 NO TESTING DONE TO DETERMINE 1279 00:52:40,720 --> 00:52:44,600 WHAT CAUSED IT. CONTINUED NSTS 1280 00:52:44,600 --> 00:52:47,040 WEEKLY AND HAD GROWTH ULTRA 1281 00:52:47,040 --> 00:52:50,920 SOUNDS AND DOPPLARS AND -- AGAIN 1282 00:52:50,920 --> 00:52:52,160 I WAS SENT HOME BECAUSE 1283 00:52:52,160 --> 00:52:53,920 EVERYTHING WAS PERFECT. 33 1284 00:52:53,920 --> 00:52:56,280 WEEKS AND 6 DAYS NST GREAT 1285 00:52:56,280 --> 00:52:59,480 MOVEMENT AND PRACTICE BREATHING 1286 00:52:59,480 --> 00:53:02,040 ONLY MIELTD CONTRACTIONS SENT ME 1287 00:53:02,040 --> 00:53:05,040 HOME. LESS THAN 36 WEEKS LATER 1288 00:53:05,040 --> 00:53:09,160 P BABY WAS DEAD AND THEY SUSPECT 1289 00:53:09,160 --> 00:53:10,280 COVID WAS CAUSE. 1290 00:53:10,280 --> 00:53:12,480 LISTED CAUSE OF DEATH IS UNKNOWN 1291 00:53:12,480 --> 00:53:16,880 6 WEEKS POSTPARTUM FOLLOW UP OB 1292 00:53:16,880 --> 00:53:19,600 TESTED ME -- FEW WEEKS LATER I 1293 00:53:19,600 --> 00:53:23,000 WAS OFFICIALLY DIAGNOSED -- I AM 1294 00:53:23,000 --> 00:53:24,840 NOT HERE TO SUGGEST EVERY PERSON 1295 00:53:24,840 --> 00:53:29,240 CONSIDERING PREGNANCY BECAUSE OF 1296 00:53:29,240 --> 00:53:30,960 [INDISCERNIBLE] AVM PS DIAGNOSIS 1297 00:53:30,960 --> 00:53:34,280 IS NOT PREDICTIVE OF FETAL 1298 00:53:34,280 --> 00:53:36,520 DEATH. -- ONE OF OBS TOLD ME 1299 00:53:36,520 --> 00:53:40,960 AFTER SON'S DEATH 1 IN 9,000 1300 00:53:40,960 --> 00:53:42,160 REACTIVE -- DON'T KNOW WHERE SHE 1301 00:53:42,160 --> 00:53:44,920 GOT THAT STATISTIC BUT TELLS ME 1302 00:53:44,920 --> 00:53:48,160 SHE TRUSTED NST FOR HIGH RISK 1303 00:53:48,160 --> 00:53:49,880 PREGNANCIES LIKE MINE TO TELL ME 1304 00:53:49,880 --> 00:53:53,840 MY BABY IS IN TROUBLE. -- NST 1305 00:53:53,840 --> 00:53:57,200 IS NOT FULL PREDICTIVE VALUE AND 1306 00:53:57,200 --> 00:54:00,120 INDICATES FETAL BLOOD OXYGEN AT 1307 00:54:00,120 --> 00:54:01,880 TIME OF TEST AND SAME COULD BE 1308 00:54:01,880 --> 00:54:04,040 SAID FOR MANY PARENTS INCLUDING 1309 00:54:04,040 --> 00:54:05,760 SOME HERE TODAY WHY WASN'T MORE 1310 00:54:05,760 --> 00:54:08,080 TESTING DONE AND WHY DIDN'T I 1311 00:54:08,080 --> 00:54:12,120 HAVE WEEKLY DOPPLAR DONE. MY 1312 00:54:12,120 --> 00:54:13,640 SON WAS STILLBORN 5 MONTHS AND 6 1313 00:54:13,640 --> 00:54:16,720 DAYS AGO I HAVE BEEN LIVING IN A 1314 00:54:16,720 --> 00:54:19,720 VIRTUALLY CATATONIC STATE. I 1315 00:54:19,720 --> 00:54:21,880 DON'T SEE FRIENDS OR FAMILY AND 1316 00:54:21,880 --> 00:54:23,680 MOTHER-IN-LAW CRIES WHEN SHE 1317 00:54:23,680 --> 00:54:24,440 SEES ME. 1318 00:54:24,440 --> 00:54:27,360 MY HUSBAND AND I SPEND WEEKENDS 1319 00:54:27,360 --> 00:54:29,160 AT SON'S GRAVE HE IS ONLY CHILD 1320 00:54:29,160 --> 00:54:31,640 AND PURPOSE AND DON'T WANT TO 1321 00:54:31,640 --> 00:54:33,640 SPEND TIME ANYWHERE ELSE 1322 00:54:33,640 --> 00:54:37,880 STILLBIRTH DESTROYS LIVES AND 1323 00:54:37,880 --> 00:54:43,360 FAMILIES -- MY SON IS ONE OF 1324 00:54:43,360 --> 00:54:44,760 23,000 BABIES THAT DIED LAST 1325 00:54:44,760 --> 00:54:46,520 YEAR THAT IS THE AMOUNT OF 1326 00:54:46,520 --> 00:54:48,640 FAMILIES THAT WILL NEVER BE THE 1327 00:54:48,640 --> 00:54:50,560 SAME. -- KNOWLEDGE TO STOP MY 1328 00:54:50,560 --> 00:54:53,040 SON FROM DYING WITH WHAT I 1329 00:54:53,040 --> 00:54:57,680 BELIEVE IS A PREVENTABLE DEATH. 1330 00:54:57,680 --> 00:54:58,800 THANKS FOR YOUR TIME. 1331 00:54:58,800 --> 00:55:00,680 >> THANK YOU SO MUCH AND THANK 1332 00:55:00,680 --> 00:55:02,120 YOU FOR BEING HERE WHEN I KNOW 1333 00:55:02,120 --> 00:55:04,160 IT IS PROBABLY VERY DIFFICULT 1334 00:55:04,160 --> 00:55:05,520 FOR YOU TO PARTICIPATE GIVEN 1335 00:55:05,520 --> 00:55:07,120 WHAT YOU SHARED AND I ALSO WANT 1336 00:55:07,120 --> 00:55:08,760 TO ACKNOWLEDGE FOR EVERYONE ON 1337 00:55:08,760 --> 00:55:10,480 THE CALL THAT THE LOSS AND 1338 00:55:10,480 --> 00:55:12,920 TRAUMA YOU ARE SHARING IS -- IT 1339 00:55:12,920 --> 00:55:13,920 IS VERY DIFFICULT I KNOW FOR 1340 00:55:13,920 --> 00:55:16,120 MANY OF YOU. I JUST WANT TO 1341 00:55:16,120 --> 00:55:19,040 RECOGNIZE HOW VERY POWERFUL AND 1342 00:55:19,040 --> 00:55:20,800 MEANINGFUL THIS IS AND JUST HOW 1343 00:55:20,800 --> 00:55:23,040 GRATEFUL WE ARE FOR YOUR 1344 00:55:23,040 --> 00:55:24,280 WILLINGNESS. THANK YOU AGAIN. 1345 00:55:24,280 --> 00:55:27,200 CATHERINE, ALL THE BEST TO YOU 1346 00:55:27,200 --> 00:55:32,040 AND YOUR FAMILY. 1347 00:55:32,040 --> 00:55:34,920 ANGELICA KOVACH. NOT SURE IF 1348 00:55:34,920 --> 00:55:36,640 YOU HAVE BEEN ABLE TO JOIN US. 1349 00:55:36,640 --> 00:55:38,480 >> RIGHT HERE. DON'T KNOW IF 1350 00:55:38,480 --> 00:55:40,000 YOU CAN HEAR ME OKAY. 1351 00:55:40,000 --> 00:55:49,400 >> WE CAN HEAR YOU JUST FINE 1352 00:55:49,400 --> 00:55:49,840 ANGELICA. 1353 00:55:49,840 --> 00:55:52,680 >> THANK YOU. GOOD AFTERNOON. 1354 00:55:52,680 --> 00:55:57,960 I'M ANGELICA FROM BOISE, IDAHO. 1355 00:55:57,960 --> 00:56:01,000 THANKS FOR THE OPPORTUNITY TO 1356 00:56:01,000 --> 00:56:04,120 SPEAK TODAY. I'M MOTHER TO ONE 1357 00:56:04,120 --> 00:56:07,120 LIVING CHILD AND 2 ANGEL BABIES. 1358 00:56:07,120 --> 00:56:09,920 MY HUSBAND AND I LOST OUR SECOND 1359 00:56:09,920 --> 00:56:12,560 CHILD TO STILLBIRTH ON JUNE 1ST 1360 00:56:12,560 --> 00:56:16,000 OF 2020 AT 33 WEEKS AND 5 DAYS 1361 00:56:16,000 --> 00:56:19,840 GESTATION DUE TO SEVERAL DAYS OF 1362 00:56:19,840 --> 00:56:21,080 UMBILICAL CORD COMPRESSION AND 1363 00:56:21,080 --> 00:56:23,120 ANOXIA I WAS A HEALTH CARE 1364 00:56:23,120 --> 00:56:25,400 PROFESSIONAL WHO WAS COMPLETELY 1365 00:56:25,400 --> 00:56:26,400 AWARE THAT SOMETHING LIKE THIS 1366 00:56:26,400 --> 00:56:29,160 COULD HAPPEN DURING MY PREGNANCY 1367 00:56:29,160 --> 00:56:31,920 AND STILL FELT COMPLETELY 1368 00:56:31,920 --> 00:56:34,480 BLINDSIDED. HEART IS BROKEN AND 1369 00:56:34,480 --> 00:56:35,600 CONSTANTLY ASK MYSELF HOW I 1370 00:56:35,600 --> 00:56:37,800 DIDN'T KNOW THAT MY SON WAS 1371 00:56:37,800 --> 00:56:40,120 FIGHTING FOR HIS LIFE WHILE HE 1372 00:56:40,120 --> 00:56:44,120 STILL OCCUPIED MY OWN BODY. 1373 00:56:44,120 --> 00:56:46,640 THE NIGHT HE DIED WHEN I 1374 00:56:46,640 --> 00:56:50,800 REALIZED I HADN'T FELT HIM MOVE 1375 00:56:50,800 --> 00:56:52,760 ABOUT LUNCH TIME -- DELAYED CARE 1376 00:56:52,760 --> 00:56:55,640 FOR 4 HOURS USING WHAT I KNOW IS 1377 00:56:55,640 --> 00:56:57,520 OUTDATED [INDISCERNIBLE] FOR HIS 1378 00:56:57,520 --> 00:56:59,040 MOVEMENT AND KICKS IN TWO HOURS 1379 00:56:59,040 --> 00:57:01,640 I DIDN'T WANT TO GO INTO TRIAGE 1380 00:57:01,640 --> 00:57:03,400 RIGHT AWAY. I DIDN'T WANT TO BE 1381 00:57:03,400 --> 00:57:06,320 A BURDEN TO THE MEDICAL STAFF SO 1382 00:57:06,320 --> 00:57:08,520 OFTEN I HEARD DISPARAGING 1383 00:57:08,520 --> 00:57:10,760 COMMENTS FROM POSITION OF 1384 00:57:10,760 --> 00:57:13,120 NURSING STAFF ABOUT ANXIOUS 1385 00:57:13,120 --> 00:57:15,760 PARENTS SEEKING HELP WHEN 1386 00:57:15,760 --> 00:57:17,360 EVERYONE IS OKAY. BECAUSE OF 1387 00:57:17,360 --> 00:57:19,960 THAT I CONVINCED MYSELF MY 1388 00:57:19,960 --> 00:57:21,880 CONCERNS WERE ALL IN MY HEAD AND 1389 00:57:21,880 --> 00:57:24,080 WHEN I WENT INTO TRIAGE IN THE 1390 00:57:24,080 --> 00:57:27,160 WEE HOURS OF THE FOLLOWING 1391 00:57:27,160 --> 00:57:28,920 MORNING NURSE COULDN'T FIND 1392 00:57:28,920 --> 00:57:31,360 EZRA'S HEATS BEAT WITH DOPPLAR 1393 00:57:31,360 --> 00:57:33,240 AND TRYING TO FIND ANY 1394 00:57:33,240 --> 00:57:36,520 INDICATION OF MOVEMENT VIA 1395 00:57:36,520 --> 00:57:38,960 ULTRASOUND. EZRA HAD BEEN GONE 1396 00:57:38,960 --> 00:57:40,760 ALREADY FOR A COUPLE HOURS WHEN 1397 00:57:40,760 --> 00:57:43,440 HE DIED MY WORLD WAS TURNED 1398 00:57:43,440 --> 00:57:44,120 UPSIDE DOWN. 1399 00:57:44,120 --> 00:57:47,000 ADDING TO THAT THE FACT THAT AS 1400 00:57:47,000 --> 00:57:50,560 TIME HAS PASSED I HEARD FAR TOO 1401 00:57:50,560 --> 00:57:53,880 MANY STORIES THAT SOUND EERILY 1402 00:57:53,880 --> 00:57:54,800 SIMILAR COUNTLESS LOSS PARENTS 1403 00:57:54,800 --> 00:57:56,880 HAVE TOLD ME ALL THEY WANTED WAS 1404 00:57:56,880 --> 00:57:59,080 ONE PERSON TO VALIDATE THEIR 1405 00:57:59,080 --> 00:58:02,520 FEELINGS OF URGENCY AND 1406 00:58:02,520 --> 00:58:03,640 IMPENDING DOOM SOMEONE TO TELL 1407 00:58:03,640 --> 00:58:06,320 THEM IT IS OKAY TO GO TO THEIR 1408 00:58:06,320 --> 00:58:08,200 PROVIDER AND CHECK UP ON THEIR 1409 00:58:08,200 --> 00:58:09,920 BABY. I UNDERSTAND MYTHODICAL 1410 00:58:09,920 --> 00:58:11,040 AND BASED ON EVIDENCE FROM 1411 00:58:11,040 --> 00:58:13,080 RESEARCH I PLEAD WITH YOU TO 1412 00:58:13,080 --> 00:58:14,680 PLACE A STOP GAP MEASURE WHILE 1413 00:58:14,680 --> 00:58:17,040 WE WAIT FOR PENDING STUDIES TO 1414 00:58:17,040 --> 00:58:19,800 GIVE US FURTHER GUIDANCE AND ASK 1415 00:58:19,800 --> 00:58:22,560 THAT THREE FOLLOWING NONINVASIVE 1416 00:58:22,560 --> 00:58:23,640 PRACTICES BE CONSIDERED FOR 1417 00:58:23,640 --> 00:58:26,160 PREVENTION OF LOSSES LIKE MY 1418 00:58:26,160 --> 00:58:29,080 OWN. ONE, ASKING PARENTS TO 1419 00:58:29,080 --> 00:58:31,120 ESTABLISH WHAT NORMAL FETAL 1420 00:58:31,120 --> 00:58:32,600 MOVEMENT MEANS FOR THEIR BABY 1421 00:58:32,600 --> 00:58:35,040 USING TOOLS LIKE COUNTED THE 1422 00:58:35,040 --> 00:58:37,600 KICKS APP AND 2 REQUESTING 1423 00:58:37,600 --> 00:58:38,560 PRENATAL PROVIDERS ASK MORE THAN 1424 00:58:38,560 --> 00:58:41,960 JUST IS YOUR BABY MOVING WHEN 1425 00:58:41,960 --> 00:58:43,240 ASSESSING ADEQUACY OF FETAL 1426 00:58:43,240 --> 00:58:46,560 MOVEMENT AND 3 MODIFYING 1427 00:58:46,560 --> 00:58:47,480 PRENATAL EDUCATION TO ESTABLISH 1428 00:58:47,480 --> 00:58:50,080 THAT P HAD HEALTH CARE PROVIDERS 1429 00:58:50,080 --> 00:58:52,120 THERE BECAUSE OF AND FOR THE 1430 00:58:52,120 --> 00:58:53,600 PATIENTS EMPOWERING ALL 1431 00:58:53,600 --> 00:58:55,440 EXPECTING PARENTS TO USE MOM AND 1432 00:58:55,440 --> 00:58:57,040 DAD VOICES WHEN THEY HAVE A 1433 00:58:57,040 --> 00:58:59,040 CONCERN REGARDING THEIR BABY. 1434 00:58:59,040 --> 00:59:00,840 THANK YOU VERY MUCH. 1435 00:59:00,840 --> 00:59:03,200 >> THANK YOU ANGELICA SO MUCH 1436 00:59:03,200 --> 00:59:06,880 FOR SHARING YOUR STORY AND FOR 1437 00:59:06,880 --> 00:59:08,120 YOUR RECOMMENDATION. 1438 00:59:08,120 --> 00:59:12,520 IF WE CAN NOW, I WILL MOVE TO 1439 00:59:12,520 --> 00:59:15,000 CAMILA CASTOR. ARE YOU WITH US 1440 00:59:15,000 --> 00:59:16,120 TODAY? 1441 00:59:16,120 --> 00:59:18,800 >> YES. I'M HERE. 1442 00:59:18,800 --> 00:59:22,360 >> GREAT. CAMILA, I WILL YIELD 1443 00:59:22,360 --> 00:59:24,160 TO YOU FOR THREE MINUTES. 1444 00:59:24,160 --> 00:59:24,960 THANKS SO MUCH. 1445 00:59:24,960 --> 00:59:27,280 >> THANK YOU. I APPRECIATE THE 1446 00:59:27,280 --> 00:59:30,040 ABILITY TO SPEAK IN THIS SPACE. 1447 00:59:30,040 --> 00:59:33,240 I AM CAMILA AND LIVE IN TEXAS 1448 00:59:33,240 --> 00:59:36,640 AND HERE TODAY AND HAVE A UNIQUE 1449 00:59:36,640 --> 00:59:38,960 STORY LITTLE BACKGROUND THREE 1450 00:59:38,960 --> 00:59:41,360 MINUTES -- MY HUSBAND DECIDED TO 1451 00:59:41,360 --> 00:59:43,480 GIVE A FAMILY WHO HAD BEEN 1452 00:59:43,480 --> 00:59:45,240 STRUGGLING WITH INFERTILITY 1453 00:59:45,240 --> 00:59:47,080 THEIR WHOLE LIFE THE GIFT OF 1454 00:59:47,080 --> 00:59:48,560 HAVING THEIR FIRST CHILD. I 1455 00:59:48,560 --> 00:59:50,480 WENT THROUGH IVF AND WHO I ASKED 1456 00:59:50,480 --> 00:59:53,640 MY PROVIDER IF THERE IS RISK OF 1457 00:59:53,640 --> 00:59:56,120 IVF IF ANY ADVERSE OUTCOMES WITH 1458 00:59:56,120 --> 00:59:59,200 DOING IVF. LIKE EVERYONE ELSE 1459 00:59:59,200 --> 01:00:03,000 SAYS I BELIEVE I'M HERE TO PLEAD 1460 01:00:03,000 --> 01:00:11,080 YOU TO IMPLEMENT POLICIES TO 1461 01:00:11,080 --> 01:00:13,360 IMPLEMENT STANDARD OF CARE SO 1462 01:00:13,360 --> 01:00:15,400 THAT EVERYONE HAS THAT SAME 1463 01:00:15,400 --> 01:00:18,160 STANDARD OF CARE. AND OBS ARE 1464 01:00:18,160 --> 01:00:19,680 FORCED TO TREAT EVERY PREGNANCY 1465 01:00:19,680 --> 01:00:21,440 THE SAME AND HAVE TO DO THIS 1466 01:00:21,440 --> 01:00:22,960 CARE. I HAVE HAD THE SAME OB. 1467 01:00:22,960 --> 01:00:25,440 SHE IS A WONDERFUL OB AND 1468 01:00:25,440 --> 01:00:26,760 PRESIDENT OF MY HOSPITAL HERE IN 1469 01:00:26,760 --> 01:00:29,400 MY CITY AND PROVES TO YOU IT 1470 01:00:29,400 --> 01:00:30,720 DOESN'T COME FROM THE PROVIDER 1471 01:00:30,720 --> 01:00:32,120 THEMSELVES AND LOTS OF TIMES I 1472 01:00:32,120 --> 01:00:34,040 BELIEVE IT COMES FROM YEARS AND 1473 01:00:34,040 --> 01:00:35,760 YEARS OF WORKING AND BEING 1474 01:00:35,760 --> 01:00:38,040 TAUGHT IN A BROKEN SYSTEM. I 1475 01:00:38,040 --> 01:00:40,520 ASKED HER IS IVF MORE OF A RISK 1476 01:00:40,520 --> 01:00:42,840 SHE TOLD ME NO I LEARN THAT IVF 1477 01:00:42,840 --> 01:00:45,280 YOU ARE FOUR TIMES MORE AT RISK 1478 01:00:45,280 --> 01:00:47,080 FOR HAVING A STILLBIRTH WENT 1479 01:00:47,080 --> 01:00:52,120 THROUGH PREGNANCY BODY WENT WELL 1480 01:00:52,120 --> 01:00:55,400 ABLE TO GET OFF HORMONES. I HAD 1481 01:00:55,400 --> 01:00:57,560 EXTRA APPOINTMENTS AND SONOGRAMS 1482 01:00:57,560 --> 01:01:00,120 AND EVERY TIME I WAS REASSURED 1483 01:01:00,120 --> 01:01:01,320 EVERYTHING WAS PERFECT AND WITH 1484 01:01:01,320 --> 01:01:04,680 ME AND WITH THIS BABY AND SO AT 1485 01:01:04,680 --> 01:01:07,440 38 WEEKS I WENT TO THE DOCTOR 1486 01:01:07,440 --> 01:01:08,640 AND NOTICED I DIDN'T GAIN WEIGHT 1487 01:01:08,640 --> 01:01:11,480 THAT WEEK FROM 37 TO 38 AND 1488 01:01:11,480 --> 01:01:12,840 ASKED IF IT WAS ANYTHING NORMAL 1489 01:01:12,840 --> 01:01:15,000 SHE SAID IT COULD BE NORMAL I 1490 01:01:15,000 --> 01:01:17,480 LET IT GO FROM IN-BETWEEN THAT 1491 01:01:17,480 --> 01:01:19,920 38 WEEK TO 39 WEEK APPOINTMENT 1492 01:01:19,920 --> 01:01:22,680 THAT WAS MY SCHEDULED DELIVERY 1493 01:01:22,680 --> 01:01:24,680 DATE I WENT IN 5 DAYS BEFORE I 1494 01:01:24,680 --> 01:01:26,760 CALLED FOR REDUCED FETAL 1495 01:01:26,760 --> 01:01:28,480 MOVEMENT AND ASKED FOR SONOGRAM 1496 01:01:28,480 --> 01:01:31,200 AND TOLD ME I HAD SONOGRAMS IT 1497 01:01:31,200 --> 01:01:32,160 THAT INSURANCE WOULD COVER AND I 1498 01:01:32,160 --> 01:01:34,600 DIDN'T GET A SONOGRAM AND 30 1499 01:01:34,600 --> 01:01:36,920 SECONDS ON A DOPPLAR AND TOLD ME 1500 01:01:36,920 --> 01:01:39,080 EVERYTHING WAS OKAY. I WOULD BE 1501 01:01:39,080 --> 01:01:42,640 AT C -- SECTION IN 5 DAYS 3 DAYS 1502 01:01:42,640 --> 01:01:45,840 AFTER THAT PROJECTILE VOMITED 1503 01:01:45,840 --> 01:01:48,120 COULDN'T KEEP WATER DOWN. TOLD 1504 01:01:48,120 --> 01:01:51,000 THEM BABY IS NOT MOVING AS MUCH 1505 01:01:51,000 --> 01:01:53,600 VOMITING YOU WILL BE FINE 1506 01:01:53,600 --> 01:01:56,920 DELIVERED IN TWO DAYS SENT ME 1507 01:01:56,920 --> 01:01:58,280 SDOE FRAN PRESCRIPTION TOOK IT 1508 01:01:58,280 --> 01:02:01,320 HOPED FOR BEST IN TWO DAYS JULY 1509 01:02:01,320 --> 01:02:04,600 14TH 2021 I SHOWED UP WITH THE 1510 01:02:04,600 --> 01:02:06,040 BABY'S PARENTS HER GRANDPARENTS 1511 01:02:06,040 --> 01:02:12,600 MY PARENTS MY HUSBAND AND ONLY 1512 01:02:12,600 --> 01:02:14,280 FOUND OUT BABY HAD DIED I HAD TO 1513 01:02:14,280 --> 01:02:16,120 SIT IN A ROOM BY MYSELF NO ONE 1514 01:02:16,120 --> 01:02:17,960 WAS TRAINED ON WHAT TO DO FOR ME 1515 01:02:17,960 --> 01:02:20,600 I SAT IN A ROOM WITH SOMEBODY 1516 01:02:20,600 --> 01:02:23,640 ELSE'S DEAD CHILD INSIDE OF MY 1517 01:02:23,640 --> 01:02:26,960 WOMB FOR THREE HOURS WHILE HEARD 1518 01:02:26,960 --> 01:02:29,200 HER PARENTS SLEEK AND CRY IN 1519 01:02:29,200 --> 01:02:32,920 ROOM NEXT TO ME WENT THROUGH 1520 01:02:32,920 --> 01:02:34,920 C-SECTION AND WAS IN SILENCE -- 1521 01:02:34,920 --> 01:02:37,560 WHEN I WAS THERE 5 DAYS PRIOR. 1522 01:02:37,560 --> 01:02:39,320 AS I WAS GOING TO LEAVE THE 1523 01:02:39,320 --> 01:02:41,600 HOSPITAL I WAS LOVE THE AND 1524 01:02:41,600 --> 01:02:43,160 CONFUSED WHAT HAPPENED NOBODY 1525 01:02:43,160 --> 01:02:44,760 GAVE ME AN ANSWER LAST THING I 1526 01:02:44,760 --> 01:02:46,200 REMEMBER ASKING MY OWE. B WHILE 1527 01:02:46,200 --> 01:02:47,680 EVERYONE WAS IN THE ROOM MY 1528 01:02:47,680 --> 01:02:49,440 FATHER ALSO A PHYSICIAN AND 1529 01:02:49,440 --> 01:02:51,080 HUSBAND AND BROTHER WHO WAS A 1530 01:02:51,080 --> 01:02:53,920 PHYSICIAN AND BABY'S PARENTS HER 1531 01:02:53,920 --> 01:02:55,920 MOM AND DAD AND TWO GRANDPARENTS 1532 01:02:55,920 --> 01:02:58,640 AND ASKED HER IF THIS HAPPENS 1533 01:02:58,640 --> 01:03:00,040 SHE TURNED AROUND AND LOOK AD 1534 01:03:00,040 --> 01:03:02,120 THE ME. THIS IS SO RARE THAT 1535 01:03:02,120 --> 01:03:04,840 LED TO ME INVESTIGATING FINDING 1536 01:03:04,840 --> 01:03:07,000 OUT 65 BABIES DIE EVERY DAY IN 1537 01:03:07,000 --> 01:03:08,160 THE UNITED STATES AND ONE THING 1538 01:03:08,160 --> 01:03:10,000 I HAVE EVERY SINGLE DAY SINCE 1539 01:03:10,000 --> 01:03:11,600 THIS STILLBIRTH I WAKE UP AND 1540 01:03:11,600 --> 01:03:13,800 FIRST THOUGHT I HAVE IS 65 1541 01:03:13,800 --> 01:03:15,320 MOTHERS TODAY ARE GOING TO LOSE 1542 01:03:15,320 --> 01:03:18,240 A BABY AND HAVE TO CARRY A DEAD 1543 01:03:18,240 --> 01:03:20,320 INSIDE OF THEIR WOMB. NO MATTER 1544 01:03:20,320 --> 01:03:23,360 HOW MANY MEETINGS I HAVE HAD IN 1545 01:03:23,360 --> 01:03:25,360 LAST YEAR AND A HALF NOTHING HAS 1546 01:03:25,360 --> 01:03:27,040 BEEN DONE ABOUT IT BUT THANK YOU 1547 01:03:27,040 --> 01:03:29,360 FOR YOUR STORY THAT LED MY 1548 01:03:29,360 --> 01:03:31,800 PROVIDER NOT BEING EDUCATED LED 1549 01:03:31,800 --> 01:03:33,880 TO THE BABY'S PARENTS HAVING 1550 01:03:33,880 --> 01:03:36,040 EXTREME GUILT NOT KNOWING AND 1551 01:03:36,040 --> 01:03:37,520 BLAMING ME THEY QUIT TALKING TO 1552 01:03:37,520 --> 01:03:40,480 ME AND TRIED TO SUE ME A YEAR 1553 01:03:40,480 --> 01:03:41,880 LATER. I'M STILL DEALING WITH 1554 01:03:41,880 --> 01:03:43,800 TRAUMA AND STILL GOING TO 1555 01:03:43,800 --> 01:03:45,760 THERAPY EVERY DAY. IT IS A NEW 1556 01:03:45,760 --> 01:03:48,840 WOUND THAT OPENS UP AS I HEAR 1557 01:03:48,840 --> 01:03:50,840 STORIES. IT IS HAERT WRENCHING 1558 01:03:50,840 --> 01:03:52,080 TO KNOW NOTHING IS BEING DONE 1559 01:03:52,080 --> 01:03:54,000 AND IS A LOW LEVEL OF EDUCATION 1560 01:03:54,000 --> 01:03:56,200 THAT EVERY PROVIDER I HAVE 1561 01:03:56,200 --> 01:03:59,440 ENCOUNTERED WHEN I CAME AT MY 1562 01:03:59,440 --> 01:04:00,400 WEEK APPOINTMENT 6 WEEK 1563 01:04:00,400 --> 01:04:01,680 APPOINTMENT AFTER MY STILLBIRTH 1564 01:04:01,680 --> 01:04:04,000 I HAD TO EDUCATE MY PROVIDER ON 1565 01:04:04,000 --> 01:04:06,240 WHAT AN EPV WAS SHE WAS DOCTOR 1566 01:04:06,240 --> 01:04:08,120 OF THE YEAR AT THE HOSPITAL LIKE 1567 01:04:08,120 --> 01:04:10,920 I SAID AND HAS HER OWN PRACTICE 1568 01:04:10,920 --> 01:04:13,840 FOR PAST 25 YEARS AND HAD TO 1569 01:04:13,840 --> 01:04:17,080 EDUCATE HER TO TEACH PATIENTS TO 1570 01:04:17,080 --> 01:04:23,080 TRACK FETAL MOVEMENT AND DO EVPS 1571 01:04:23,080 --> 01:04:24,200 -- IN NEW YORK DEALING WITH 1572 01:04:24,200 --> 01:04:26,760 PATIENTS WITH A LOSS AND TAUGHT 1573 01:04:26,760 --> 01:04:29,040 HER TO SUPPORT STILLBIRTH MOMS 1574 01:04:29,040 --> 01:04:30,920 AFTERWARD I WAS TOLD THIS WAS 1575 01:04:30,920 --> 01:04:32,280 SOMETHING THAT NEVER HAPPENED 1576 01:04:32,280 --> 01:04:35,080 AND MADE ME FEEL LIKE IT WAS 1577 01:04:35,080 --> 01:04:37,000 ABSOLUTELY MY FAULT AND TURNED 1578 01:04:37,000 --> 01:04:38,520 SOMETHING WONDERFUL I WAS DOING 1579 01:04:38,520 --> 01:04:40,320 INTO THE WORST THING OF MY LIFE. 1580 01:04:40,320 --> 01:04:42,720 I'M HERE TO ASK YOU TO PLEASE 1581 01:04:42,720 --> 01:04:44,480 TAKE STILLBIRTH PREVENTION AS A 1582 01:04:44,480 --> 01:04:46,480 NATIONAL URGENCY THAT IT IS. IT 1583 01:04:46,480 --> 01:04:48,960 IS BABIES AND MOTHERS ARE 1584 01:04:48,960 --> 01:04:51,080 DROPPING LIKE FLIES AND IT NEEDS 1585 01:04:51,080 --> 01:04:53,480 TO BE ADDRESSED. THANK YOU SO 1586 01:04:53,480 --> 01:04:53,680 MUCH. 1587 01:04:53,680 --> 01:04:55,480 >> THANK YOU CAMILA. I 1588 01:04:55,480 --> 01:04:57,000 APPRECIATE YOU HIGHLIGHTING 1589 01:04:57,000 --> 01:04:59,080 ISSUES AS OTHERS HAVE AROUND 1590 01:04:59,080 --> 01:05:02,640 MENTAL HEALTH AS WELL AS IVF AND 1591 01:05:02,640 --> 01:05:05,080 PREVENTABLE RISK FACTORS THAT IS 1592 01:05:05,080 --> 01:05:07,040 SOMETHING THAT WE LOOK CLOSELY 1593 01:05:07,040 --> 01:05:11,080 AT. THANK YOU FOR RAISING 1594 01:05:11,080 --> 01:05:14,520 THOSE. 1595 01:05:14,520 --> 01:05:22,960 IF I CAN NOW ASK ANNA VICK. 1596 01:05:22,960 --> 01:05:24,560 HAVE YOU JOINED US? 1597 01:05:24,560 --> 01:05:25,440 >> I AM HERE. 1598 01:05:25,440 --> 01:05:27,760 >> OKAY. PLEASE BEGIN. 1599 01:05:27,760 --> 01:05:31,120 >> I'M HERE WITH MY HUSBAND 1600 01:05:31,120 --> 01:05:32,160 JOSHUA VICK. 1601 01:05:32,160 --> 01:05:34,120 >> HELLO, HELLO. 1602 01:05:34,120 --> 01:05:38,240 >> THIS IS REPRESENTATION OF OUR 1603 01:05:38,240 --> 01:05:39,600 SON NATHANIEL WHO HAVE BEEN 7 1604 01:05:39,600 --> 01:05:41,320 THIS YEAR THIS LENGTH AND WEIGHT 1605 01:05:41,320 --> 01:05:44,080 HE WAS CLEARLY A BIG BOY READY 1606 01:05:44,080 --> 01:05:46,840 TO BE HOME WITH US. WE HAD A 1607 01:05:46,840 --> 01:05:47,960 PERFECT HEALTHY TEXTBOOK 1608 01:05:47,960 --> 01:05:49,520 PREGNANCY IT WAS CALLED EVERY 1609 01:05:49,520 --> 01:05:51,720 TIME WE CAME IN AND ALL OUR 1610 01:05:51,720 --> 01:05:53,480 CONCERNS WERE KIND OF SWEPT 1611 01:05:53,480 --> 01:05:56,280 ASIDE. I DID HAVE A FEW ISSUES 1612 01:05:56,280 --> 01:05:58,480 THROUGHOUT THE PREGNANCY FELT 1613 01:05:58,480 --> 01:05:59,760 WEAK AND NEVER TOOK AN EXTRA 1614 01:05:59,760 --> 01:06:02,000 LOOK AT MY SON AND LOOK BACK AND 1615 01:06:02,000 --> 01:06:04,040 WONDER IF THEY HAD GIVEN ME AN 1616 01:06:04,040 --> 01:06:07,160 EXTRA ULTRASOUND IN THE THIRD 1617 01:06:07,160 --> 01:06:08,440 TRIMESTER THEY MIGHT HAVE 1618 01:06:08,440 --> 01:06:10,240 NOTICED WHAT WAS HAPPENING WITH 1619 01:06:10,240 --> 01:06:11,960 MY SON'S CORD WE NOW FOUND OUT 1620 01:06:11,960 --> 01:06:14,000 TOOK ME A LOT OF WORK TO BE 1621 01:06:14,000 --> 01:06:15,280 HONEST. THE HOSPITAL DID 1622 01:06:15,280 --> 01:06:17,080 NOTHING TO HELP US FIND THE 1623 01:06:17,080 --> 01:06:19,720 CAUSE AND WE REQUESTED MEETINGS. 1624 01:06:19,720 --> 01:06:22,600 I STAYED UP EVERY NIGHT. I WAS 1625 01:06:22,600 --> 01:06:24,160 PROBABLY GOING INSANE AND PARENT 1626 01:06:24,160 --> 01:06:26,320 WHO IS A CHILD WHO IS SUPPOSED 1627 01:06:26,320 --> 01:06:29,000 TO BE BORN IN NEXT 2 MONTHS IS 1628 01:06:29,000 --> 01:06:31,240 TOLD WE DON'T KNOW WHY YOUR BABY 1629 01:06:31,240 --> 01:06:33,960 DIED. SOMETIMES HEALTHY BABIES 1630 01:06:33,960 --> 01:06:35,840 JUST DIE. THAT DOESN'T SIT WELL 1631 01:06:35,840 --> 01:06:38,840 WITH YOU. WASN'T HAERT BROKEN 1632 01:06:38,840 --> 01:06:40,120 AND MIND COULDN'T UNDERSTAND IT. 1633 01:06:40,120 --> 01:06:42,920 I AM EDUCATED WENT TO UCLA FOR 1634 01:06:42,920 --> 01:06:44,640 PSYCHOLOGY AND HAD A DAUGHTER 1635 01:06:44,640 --> 01:06:46,840 BEFORE. I DIDN'T UNDERSTAND HOW 1636 01:06:46,840 --> 01:06:51,040 MY SON JUST FLAT OUT DIED OUT OF 1637 01:06:51,040 --> 01:06:52,200 NOWHERE. CRASHED C-SECTION WENT 1638 01:06:52,200 --> 01:06:55,120 ANY WAS WORRIED NEVER TOLD ABOUT 1639 01:06:55,120 --> 01:06:56,840 FETAL MOVEMENT EITHER. I READ 1640 01:06:56,840 --> 01:06:59,600 ABOUT IT AND LOOKED IT UP AND 1641 01:06:59,600 --> 01:07:00,880 STARTED TO KICK COUNT HE WASN'T 1642 01:07:00,880 --> 01:07:03,160 RESPONDING WAY HE NORMALLY DOES. 1643 01:07:03,160 --> 01:07:04,160 HUSBAND STAYED HOME WITH OUR 1644 01:07:04,160 --> 01:07:07,160 DAUGHTER I WENT IN HAD A -- HAD 1645 01:07:07,160 --> 01:07:09,520 NO INFORMATION GIVEN TO ME. 1646 01:07:09,520 --> 01:07:11,120 DOCTOR FINALLY ARRIVED WE HAVE 1647 01:07:11,120 --> 01:07:13,800 TO TAKE YOUR BABY OUT HEARTBEAT 1648 01:07:13,800 --> 01:07:15,320 IS CRASHING AND CALLED MY 1649 01:07:15,320 --> 01:07:17,000 HUSBAND AND LET HIM KNOW THIS AT 1650 01:07:17,000 --> 01:07:18,600 THAT POINT I WAS PUT UNDERSTAND 1651 01:07:18,600 --> 01:07:20,320 AND I COULD PRAY FOR HIM AND FOR 1652 01:07:20,320 --> 01:07:22,120 ME I NEED TODAY LIVE IN 1653 01:07:22,120 --> 01:07:24,080 SITUATIONS THERE IS MORE RISK 1654 01:07:24,080 --> 01:07:26,000 FOR MOTHER AS WELL IT WAS CRASH 1655 01:07:26,000 --> 01:07:28,840 C SECTION AS I SAID. I WAS VERY 1656 01:07:28,840 --> 01:07:30,880 SCARED FOR MY OWN LIFE AND 1657 01:07:30,880 --> 01:07:32,600 HUSBAND HERE COULD GIVE A LITTLE 1658 01:07:32,600 --> 01:07:35,840 BIT OF HIS PERSPECTIVE AS A 1659 01:07:35,840 --> 01:07:37,320 FATHER. THIS HAS EFFECTED HIM 1660 01:07:37,320 --> 01:07:38,000 DEFINITELY ALSO. 1661 01:07:38,000 --> 01:07:42,000 >> OH, YEAH. DEFINITELY. PTSD 1662 01:07:42,000 --> 01:07:43,080 IS EXTREMELY A DIFFICULT THING 1663 01:07:43,080 --> 01:07:45,000 TO DEAL WITH. TOUGH PART FOR 1664 01:07:45,000 --> 01:07:47,040 ME. WAYS ON THE PHONE WITH HER 1665 01:07:47,040 --> 01:07:49,440 PRETTY MUCH THE WHOLE TIME ON 1666 01:07:49,440 --> 01:07:50,920 SPEAKER. WHEN THEY SAID THEY 1667 01:07:50,920 --> 01:07:54,040 HAD TO TAKE HIM OUTLET BABY AT 1668 01:07:54,040 --> 01:07:56,720 THE TIME, I HAD A FRIEND OF OURS 1669 01:07:56,720 --> 01:07:58,320 COME OVER AND WATCH OUR 1670 01:07:58,320 --> 01:08:00,960 DAUGHTER. I FLEW OVER THERE GOT 1671 01:08:00,960 --> 01:08:04,320 THERE AND SHE WAS BASICALLY 1672 01:08:04,320 --> 01:08:06,480 UNCONSCIOUS AND THEN THEY KIND 1673 01:08:06,480 --> 01:08:09,320 OF BROUGHT ME IN. I BEAT THE 1674 01:08:09,320 --> 01:08:11,000 DOCTOR THERE. HOWDY BEAT THE 1675 01:08:11,000 --> 01:08:13,360 MAIN DOCTOR THERE. I SAW HER 1676 01:08:13,360 --> 01:08:15,440 SLOWLY WALKING UP IN THE PARKING 1677 01:08:15,440 --> 01:08:17,880 LOT. I GOT TO THE ROOM BEFORE 1678 01:08:17,880 --> 01:08:19,440 SHE DID. THEY -- THEY WERE 1679 01:08:19,440 --> 01:08:21,600 TRYING TO BRING ME IN. OH, NO, 1680 01:08:21,600 --> 01:08:24,840 NO, NO. WE ARE HAVING PROBLEMS 1681 01:08:24,840 --> 01:08:26,840 I GUESS BROUGHT ME BACK OUT. 1682 01:08:26,840 --> 01:08:28,840 OKAY. I'M SITTING IN ROOM BY 1683 01:08:28,840 --> 01:08:30,520 MYSELF AND THEY SAID WE ARE 1684 01:08:30,520 --> 01:08:33,320 SORRY YOUR SON DIDN'T MAKE IT. 1685 01:08:33,320 --> 01:08:34,720 THEY BROUGHT ME IN. 1686 01:08:34,720 --> 01:08:38,000 THEY HAND ME OWEN. I'M SITTING 1687 01:08:38,000 --> 01:08:40,120 THERE AND ANA IS UNCONSCIOUS. 1688 01:08:40,120 --> 01:08:42,280 I'M HAVING TO DEAL WITH THE LOSS 1689 01:08:42,280 --> 01:08:44,280 OF OUR SON ALL BY MYSELF AND 1690 01:08:44,280 --> 01:08:46,480 FOUR RANDOM DOCTORS I DIDN'T 1691 01:08:46,480 --> 01:08:49,680 KNOW STANDING AROUND ME. I HAD 1692 01:08:49,680 --> 01:08:52,000 TO TELL HER WE LOST OUR SON WHEN 1693 01:08:52,000 --> 01:08:54,720 SHE WOKE UP. I HAD TO GO 1694 01:08:54,720 --> 01:08:57,280 THROUGH IT TWICE. THAT -- THAT 1695 01:08:57,280 --> 01:08:58,360 JUST DESTROYED ME. 1696 01:08:58,360 --> 01:09:00,400 THAT WAS IT FOR ME HONESTLY. I 1697 01:09:00,400 --> 01:09:02,800 -- THERE IS NO COMING BACK FROM 1698 01:09:02,800 --> 01:09:04,120 THAT. I DON'T CARE HOW STRONG 1699 01:09:04,120 --> 01:09:06,040 YOU ARE THERE IS NO COMING BACK 1700 01:09:06,040 --> 01:09:07,480 FROM THAT. IT HAS BEEN 1701 01:09:07,480 --> 01:09:09,680 EXTREMELY DIFFICULT ON ALL OUR 1702 01:09:09,680 --> 01:09:11,080 FAMILIES BECAUSE WHEN YOU EFFECT 1703 01:09:11,080 --> 01:09:13,720 THE PARENTS THAT EFFECTS OUR 1704 01:09:13,720 --> 01:09:15,440 LIVING CHILDREN AND YOU KNOW WE 1705 01:09:15,440 --> 01:09:17,640 OH, GOSH OH, WE FREAK OUT OVER 1706 01:09:17,640 --> 01:09:21,760 SO MANY THINGS MOST PARENTS 1707 01:09:21,760 --> 01:09:22,120 DON'T. 1708 01:09:22,120 --> 01:09:24,120 THAT EFFECTS THEM AND MAKES THEM 1709 01:09:24,120 --> 01:09:27,400 HIGH ANXIETY. SO, IT WAS VERY 1710 01:09:27,400 --> 01:09:27,600 TRAGIC. 1711 01:09:27,600 --> 01:09:28,840 >> OUR WHOLE PURPOSE WITH THIS 1712 01:09:28,840 --> 01:09:30,840 IS TO FIND THE CAUSE OF OUR 1713 01:09:30,840 --> 01:09:32,680 SON'S DEATH OURSELVES IS WE 1714 01:09:32,680 --> 01:09:34,080 WANTED TO BECOME PREGNANT AGAIN 1715 01:09:34,080 --> 01:09:37,440 WOULD HAVE HELPED WITH PREGNANCY 1716 01:09:37,440 --> 01:09:40,080 AFTER LOSS AND DOCTORS DID 1717 01:09:40,080 --> 01:09:42,560 NOTHING AND DISCOURAGED AUTOPSY 1718 01:09:42,560 --> 01:09:44,320 WE WERE TOLD SOMETIMES PARENTS 1719 01:09:44,320 --> 01:09:45,520 DON'T FIND OUT INFORMATION AND 1720 01:09:45,520 --> 01:09:47,400 REGRET DOING IT AND COSTS YOU 1721 01:09:47,400 --> 01:09:48,960 ALL OF THE MONEY AND BARRIERS 1722 01:09:48,960 --> 01:09:50,840 BEING PLACED FOR US TO FIND OUT 1723 01:09:50,840 --> 01:09:53,080 WHAT EXACTLY HAPPENED BUT GOT 1724 01:09:53,080 --> 01:09:59,040 THE FORTUNE OF FINDING OUT NOW 6 1725 01:09:59,040 --> 01:10:01,840 YEARS AFTER PLAS KREN TA 1726 01:10:01,840 --> 01:10:04,360 PATHOLOGY HE DIED FROM CORD 1727 01:10:04,360 --> 01:10:05,360 COMPLICATIONS HELPED ME AS A 1728 01:10:05,360 --> 01:10:06,960 GREEFR AND FOR PARENTS IT WOULD 1729 01:10:06,960 --> 01:10:10,080 BE VALUABLE TO HELP SAVE OTHER 1730 01:10:10,080 --> 01:10:12,000 LIVES I'M WORKING TO HAVE HIS 1731 01:10:12,000 --> 01:10:14,320 DATA UPDATED AND TOLD MANY IN 1732 01:10:14,320 --> 01:10:15,880 WAYS THIS WON'T HAPPEN BUT THEY 1733 01:10:15,880 --> 01:10:17,760 DON'T KNOW ME YET. I'M A MOTHER 1734 01:10:17,760 --> 01:10:20,520 WHO IS VERY DETERMINED AND MY 1735 01:10:20,520 --> 01:10:22,040 SON'S DEATH AND LIFE MATTERS. 1736 01:10:22,040 --> 01:10:24,200 YOU KNOW, THE REASON HE DIED 1737 01:10:24,200 --> 01:10:25,960 MATTERS AND IT WILL BE PUT IN 1738 01:10:25,960 --> 01:10:28,040 THERE SO OTHER PEOPLE CAN KNOW 1739 01:10:28,040 --> 01:10:30,120 AND IT CAN SAVE OTHER CHILDREN. 1740 01:10:30,120 --> 01:10:32,840 IT IS NOT JUST NOT HAPPENING FOR 1741 01:10:32,840 --> 01:10:34,120 ANY REASON NOT WE DON'T KNOW WHY 1742 01:10:34,120 --> 01:10:36,120 THIS IS HAPPENING IT IS WHAT 1743 01:10:36,120 --> 01:10:38,280 LOTS OF PARENTS ARE TOLD AND IT 1744 01:10:38,280 --> 01:10:40,120 CONTINUES TO BE A CYCLE AND 1745 01:10:40,120 --> 01:10:41,080 CRISIS CONTINUES WITH SAME 1746 01:10:41,080 --> 01:10:43,400 NUMBER OF BABIES DYING EVERY DAY 1747 01:10:43,400 --> 01:10:44,640 AND I CAN'T LIVE WITH MYSELF 1748 01:10:44,640 --> 01:10:46,560 WITH THAT INFORMATION AND SAME 1749 01:10:46,560 --> 01:10:48,720 AS CAMILA MENTIONED EVERY DAY I 1750 01:10:48,720 --> 01:10:50,440 THINK ABOUT THE 65 FAMILIES 1751 01:10:50,440 --> 01:10:52,000 GOING THROUGH THIS TODAY AND 1752 01:10:52,000 --> 01:10:54,000 BREAKS MY HEART AND MAKES ME 1753 01:10:54,000 --> 01:10:55,360 VERY ANGRY. SHOULDN'T BE 1754 01:10:55,360 --> 01:10:56,560 HAPPENING WE HAVE LOTS OF 1755 01:10:56,560 --> 01:10:59,120 INFORMATION AND LOTS OF DATA 1756 01:10:59,120 --> 01:11:01,480 BEING PUT IN WAS PRESENTED BY 1757 01:11:01,480 --> 01:11:03,400 DR. DUDLEY SINCE THIS IS INPUT 1758 01:11:03,400 --> 01:11:04,520 RIGHT AWAY AND THEY DON'T KNOW 1759 01:11:04,520 --> 01:11:08,240 AND AUTOPSIES ARE NOT BACK AND 1760 01:11:08,240 --> 01:11:10,480 WE DON'T HAVE PLACENTA PATHOLOGY 1761 01:11:10,480 --> 01:11:13,520 BACK WHY RUSHING THE PROCESS? 1762 01:11:13,520 --> 01:11:15,880 IF ANYBODY ELSE WE WOULD KNOW 1763 01:11:15,880 --> 01:11:16,960 WHY THIS PERSON DIED AND MAKE 1764 01:11:16,960 --> 01:11:20,080 SURE IT IS CORRECT AND GO BACK 1765 01:11:20,080 --> 01:11:22,920 AND CORRECT IT NOT JUST ON 1766 01:11:22,920 --> 01:11:25,960 PARENTS IT SHOULD BE SYSTEMIC 1767 01:11:25,960 --> 01:11:28,120 EVERYONE DESERVES TO KNOW A 1768 01:11:28,120 --> 01:11:30,200 REASON WHY MY SON DIED AND AVAIL 1769 01:11:30,200 --> 01:11:32,200 B WILLING FOR YOU FOR RESEARCH 1770 01:11:32,200 --> 01:11:34,560 FOR FAMILIES IN THIS COUNTRY AND 1771 01:11:34,560 --> 01:11:35,640 THANKS FOR YOUR TIME AND ALL YOU 1772 01:11:35,640 --> 01:11:38,960 ARE DOG TO HELP US SCOMBL THANK 1773 01:11:38,960 --> 01:11:40,760 YOU ANA AND JOSHUA FOR 1774 01:11:40,760 --> 01:11:42,320 HIGHLIGHTING DATA LIMITATIONS 1775 01:11:42,320 --> 01:11:44,840 AND ALSO FOR TALKING ABOUT 1776 01:11:44,840 --> 01:11:46,040 MENTAL HEALTH IMPLICATIONS WE DO 1777 01:11:46,040 --> 01:11:48,760 APPRECIATE IT. WE WILL SWITCH 1778 01:11:48,760 --> 01:11:50,960 GEARS A LITTLE BIT FOR 1779 01:11:50,960 --> 01:11:54,280 ORGANIZATIONS TO SPEAK TO US. 1780 01:11:54,280 --> 01:11:58,320 SO, I WILL NOW RECOGNIZE 1781 01:11:58,320 --> 01:12:01,480 MEREDITH MCCLOUD COBB. PLEASE 1782 01:12:01,480 --> 01:12:04,720 CORRECT ME WHO IS REPRESENTING 1783 01:12:04,720 --> 01:12:06,760 OLIVER'S WAY AND REMINDING FOLKS 1784 01:12:06,760 --> 01:12:09,920 AND WE WANT TO BE RESPECTFUL OF 1785 01:12:09,920 --> 01:12:11,880 PEOPLE JOINING OR WHO HAVE TO 1786 01:12:11,880 --> 01:12:14,600 LEAVE WE ARE TRYING TO KEEP 1787 01:12:14,600 --> 01:12:15,920 INDIVIDUAL COMMENTS TO THREE 1788 01:12:15,920 --> 01:12:16,880 MINUTES AND ORGANIZATIONAL 1789 01:12:16,880 --> 01:12:18,560 COMMENTS TO 5 MINUTES WHEN I 1790 01:12:18,560 --> 01:12:20,560 COME ON CAMERA YOU HAVE ABOUT A 1791 01:12:20,560 --> 01:12:22,560 MINUTE LEFT. TRYING NO THE TO 1792 01:12:22,560 --> 01:12:24,120 INTERRUPT. I RECOGNIZE THIS IS 1793 01:12:24,120 --> 01:12:26,400 A VERY DIFFICULT SITUATION. SO, 1794 01:12:26,400 --> 01:12:28,760 I'M TRYING TO BE RESPECTFUL. I 1795 01:12:28,760 --> 01:12:30,200 JUST WANT TO REMIND EVERYBODY OF 1796 01:12:30,200 --> 01:12:32,120 THE PARAMETERS AND REALLY 1797 01:12:32,120 --> 01:12:33,840 APPRECIATE YOU ALL BEING 1798 01:12:33,840 --> 01:12:36,880 ATTENTIVE TO THEM. MEREDITH, IF 1799 01:12:36,880 --> 01:12:40,200 YOU ARE WITH US FROM OLIVER'S 1800 01:12:40,200 --> 01:12:40,400 WAY. 1801 01:12:40,400 --> 01:12:43,120 >> YES. I HAVE SLIDES. I DON'T 1802 01:12:43,120 --> 01:12:44,800 KNOW IF -- GREAT. FANTASTIC. 1803 01:12:44,800 --> 01:12:45,240 >> THANK YOU. 1804 01:12:45,240 --> 01:12:48,320 >> THANK YOU. I'M WITH OLIVER'S 1805 01:12:48,320 --> 01:12:50,920 WAY, THE PUBLIC CHARITY MY 1806 01:12:50,920 --> 01:12:53,040 FAMILY ESTABLISHED TO CARRY ON 1807 01:12:53,040 --> 01:12:56,120 LIVING WORK OF OUR SON AND 1808 01:12:56,120 --> 01:12:58,520 BROTHER ILLIVER JAMES MCCLOUD 1809 01:12:58,520 --> 01:13:01,280 COBB. NEXT SLIDE, PLEASE. NEXT 1810 01:13:01,280 --> 01:13:02,520 SLIDE, PLEASE. 1811 01:13:02,520 --> 01:13:06,360 OLIVER DIED JANUARY EIGHTH TO 1812 01:13:06,360 --> 01:13:11,080 PREVIOUS SLIDE. 1813 01:13:11,080 --> 01:13:12,200 2021. [INDISCERNIBLE] WAS 1814 01:13:12,200 --> 01:13:15,480 HIGHLY EXPERIENCED. 35 + YEARS 1815 01:13:15,480 --> 01:13:17,280 EXPERIENCED WITH OB AND MF WAS 1816 01:13:17,280 --> 01:13:20,120 IN 70S AND CARE CONTINUITY 1817 01:13:20,120 --> 01:13:22,240 THROUGHOUT THE PREGNANCY AND 1818 01:13:22,240 --> 01:13:25,400 SAME TEAM AS MY PRIOR LIVING 1819 01:13:25,400 --> 01:13:26,440 PREGNANCY AND IMMEDIATE CAUSE OF 1820 01:13:26,440 --> 01:13:28,800 DEATH WAS INCORRECT 1821 01:13:28,800 --> 01:13:30,480 INTERPRETATION OF NST IF IN 1822 01:13:30,480 --> 01:13:32,040 HOURS BEFORE HIS DEATH AND 1823 01:13:32,040 --> 01:13:34,240 PRESENTED TO OB WITH CONCERNS OF 1824 01:13:34,240 --> 01:13:37,160 REDUCED FETAL MOVEMENT AND 1825 01:13:37,160 --> 01:13:38,720 ULTIMATELY FRANTIC MOVEMENT 1826 01:13:38,720 --> 01:13:42,880 DURING NST WITH NO PRIOR MEDICAL 1827 01:13:42,880 --> 01:13:45,160 EXPERIENCE. I DISPUTED NST 1828 01:13:45,160 --> 01:13:47,560 FINDINGS AND HER INTERPRETATION. 1829 01:13:47,560 --> 01:13:52,560 SHE RIPPED THE NST FINDING OR 1830 01:13:52,560 --> 01:13:54,680 NST REPORT OFF. AND ARGUED WITH 1831 01:13:54,680 --> 01:13:57,360 ME ABOUT THE INTERPRETATION. I 1832 01:13:57,360 --> 01:14:00,120 SUBSEQUENTLY FOUND OUT AFTER MY 1833 01:14:00,120 --> 01:14:01,800 SON'S DEATH WAYS INDEED CORRECT. 1834 01:14:01,800 --> 01:14:03,680 THERE WAS NO BASELINE TO BE 1835 01:14:03,680 --> 01:14:04,800 ESTABLISHED AND I SHOULD HAVE 1836 01:14:04,800 --> 01:14:08,080 BEEN ADMITTED TO THE HOSPITAL. 1837 01:14:08,080 --> 01:14:09,920 INVESTIGATIONS THAT WE COMPLETED 1838 01:14:09,920 --> 01:14:12,120 AFTER HIS DEATH WERE ALL LEAD BY 1839 01:14:12,120 --> 01:14:14,520 ME. THERE WAS NO PROCESS FOR 1840 01:14:14,520 --> 01:14:16,360 INVESTIGATING HIS DEATH. I WAS 1841 01:14:16,360 --> 01:14:18,400 SIMPLY PUSHED OUT BY THE 1842 01:14:18,400 --> 01:14:19,560 PHYSICIAN IN THE HOSPITAL TO 1843 01:14:19,560 --> 01:14:24,000 FIGURE IT OUT MYSELF AND SAW 1844 01:14:24,000 --> 01:14:28,120 7MFNS FOR CASE REVIEWS AND 1845 01:14:28,120 --> 01:14:29,520 FORTUNATE AND ONLY THING THAT 1846 01:14:29,520 --> 01:14:35,080 WENT RIGHT, OUGHT ONCY -- 1847 01:14:35,080 --> 01:14:39,840 FORTUNATE WITH AMNIO WITH EX-OHM 1848 01:14:39,840 --> 01:14:42,840 CMA CARIO TYPE ALL NORMAL AND 1849 01:14:42,840 --> 01:14:45,160 REVIEW OF ALL MY ULTRASOUNDS. 1850 01:14:45,160 --> 01:14:46,360 NEXT SLIDE, PLEASE. 1851 01:14:46,360 --> 01:14:50,280 RISK FACTORS FOR STILLBIRTH IN 1852 01:14:50,280 --> 01:14:53,080 MY CASE WERE LARGE AND KNOWN 1853 01:14:53,080 --> 01:14:55,480 DURING PREGNANCY IS SON HAD 1854 01:14:55,480 --> 01:15:01,600 SINGLE UMBILICAL ARTERY AND 1855 01:15:01,600 --> 01:15:04,120 PROSTOGLANDON RELEASE DURING 1856 01:15:04,120 --> 01:15:06,240 PREGNANCY AND -- I HAD ADVANCED 1857 01:15:06,240 --> 01:15:09,000 CIRCLE DILATION FROM 26 WEEKS 1858 01:15:09,000 --> 01:15:13,120 ONWARD AND ER VISIT DECREASED 1859 01:15:13,120 --> 01:15:15,840 FETAL MOVEMENT AT 36 + WEEKS 1860 01:15:15,840 --> 01:15:19,640 KNOWN DURING PREGNANCY THERE WAS 1861 01:15:19,640 --> 01:15:20,240 [INDISCERNIBLE] AND MARGINAL 1862 01:15:20,240 --> 01:15:23,080 INSERTION OF MY CORD INTO THE 1863 01:15:23,080 --> 01:15:27,640 PLACENTA OF MY SON'S AND -- 1864 01:15:27,640 --> 01:15:30,720 PROFUSION FINDINGS AND SIGNS OF 1865 01:15:30,720 --> 01:15:32,400 SUBACUTE CHRONIC AND ACUTE BRAIN 1866 01:15:32,400 --> 01:15:34,080 DAMAGE. NEXT SLIDE, PLEASE. 1867 01:15:34,080 --> 01:15:37,080 THE BOTTOM LINE IN MY CASE AND 1868 01:15:37,080 --> 01:15:39,040 WHEN I WANT YOU TO TAKE AWAY 1869 01:15:39,040 --> 01:15:43,280 FROM THIS IS ALL SIGNS POINTED 1870 01:15:43,280 --> 01:15:45,120 TO IMPENDING STILLBIRTH YET NO 1871 01:15:45,120 --> 01:15:50,240 ONE WAS LOOKING AT IT ASKED MFM 1872 01:15:50,240 --> 01:15:52,120 AFTER STILLBIRTH WEEKS PRIOR HE 1873 01:15:52,120 --> 01:15:53,920 SAID SHIT HAPPENS AND NOTHING WE 1874 01:15:53,920 --> 01:15:56,920 CAN DO ABOUT IT. RESEARCH CLEAR 1875 01:15:56,920 --> 01:15:59,360 PHYSICIAN'S ATTITUDES AROUND 1876 01:15:59,360 --> 01:16:02,920 STILLBIRTH EFFECT OUTCOMES 1877 01:16:02,920 --> 01:16:04,200 MATERNAL DEATH IS REGARDED AS 1878 01:16:04,200 --> 01:16:06,720 VERY SERIOUS EVENT IN HOSPITAL 1879 01:16:06,720 --> 01:16:09,240 AND REQUIRED TEAM TO LOOK AT 1880 01:16:09,240 --> 01:16:10,680 SITUATION AND STILLBIRTH IS 1881 01:16:10,680 --> 01:16:13,640 TREATED AS TRAGIC FETAL OUTCOME. 1882 01:16:13,640 --> 01:16:15,480 NEXT SLIDE, PLEASE. 1883 01:16:15,480 --> 01:16:17,960 ADDITIONAL FINDINGS, HE WAS 1884 01:16:17,960 --> 01:16:19,960 GENETICALLY AND ANATOMICALLY 1885 01:16:19,960 --> 01:16:22,520 NORMAL AND THERE WAS BRAIN 1886 01:16:22,520 --> 01:16:24,920 DAMAGE THROUGHOUT ALL MISSED. 1887 01:16:24,920 --> 01:16:26,320 OLIVER WOULD HAVE BEEN HOME. 1888 01:16:26,320 --> 01:16:27,480 THAT IS THE HAD HARDEST PART 1889 01:16:27,480 --> 01:16:30,160 ABOUT THIS IS IF I HAD FOLLOWED 1890 01:16:30,160 --> 01:16:32,840 MY GUT AND GONE TO A DIFFERENT 1891 01:16:32,840 --> 01:16:34,600 PROVIDER OR CONTINUED TO ARGUE 1892 01:16:34,600 --> 01:16:36,000 WITH HER ABOUT HER 1893 01:16:36,000 --> 01:16:38,280 INTERPRETATION OF THE NST, HE 1894 01:16:38,280 --> 01:16:39,800 WOULD HAVE BEEN HOME. 1895 01:16:39,800 --> 01:16:41,680 AND SO HE DIDN'T MAKE IT HOME 1896 01:16:41,680 --> 01:16:45,000 BECAUSE I TRUSTED MY PROVIDER. 1897 01:16:45,000 --> 01:16:47,040 INSTEAD, WE REBUILT OUR ENTIRE 1898 01:16:47,040 --> 01:16:49,560 LIVES AND WE MOVED STATES FOR 1899 01:16:49,560 --> 01:16:52,720 BETTER CARE AND SPENT THOUSANDS 1900 01:16:52,720 --> 01:16:55,080 ON GRIEF THERAPY FOR MY LIVING 1901 01:16:55,080 --> 01:16:57,640 SON AND MYSELF AND HUSBAND AND 1902 01:16:57,640 --> 01:17:00,200 PURCHASED BURIAL PLOTS AS A 1903 01:17:00,200 --> 01:17:04,120 FAMILY AND 5 ROUNDS OF IVF AND 1904 01:17:04,120 --> 01:17:07,600 UTTERIN SURGERY AND THOUSANDS ON 1905 01:17:07,600 --> 01:17:09,000 SUBSEQUENT PREGNANCY. NEXT 1906 01:17:09,000 --> 01:17:10,120 SLIDE, PLEASE. 1907 01:17:10,120 --> 01:17:12,400 THIS IS MY WISH LIST. I THINK 1908 01:17:12,400 --> 01:17:14,400 WE NEED TO FUND RESEARCH TO 1909 01:17:14,400 --> 01:17:17,000 CREATE A RISK PROFILE AND ALL 1910 01:17:17,000 --> 01:17:19,320 PREGNANCIES FOR STILLBIRTH AND 1911 01:17:19,320 --> 01:17:21,640 MATERNAL DEATH SUCH AS NEW 1912 01:17:21,640 --> 01:17:24,120 DIAGNOSES ARE ADDED OR EVENTS 1913 01:17:24,120 --> 01:17:26,000 OCCURRING IN PREGNANCY RISK 1914 01:17:26,000 --> 01:17:27,920 UPDATES AS WE GO. AND ALL OF 1915 01:17:27,920 --> 01:17:29,400 THE CARE TEAM AND MOTHER ARE 1916 01:17:29,400 --> 01:17:31,280 AWARE OF THIS RISK AND CAN BE 1917 01:17:31,280 --> 01:17:33,320 COUNTING MOVEMENTS AND DOG 1918 01:17:33,320 --> 01:17:35,360 EVERYTHING THEY NEED TO PREVENT. 1919 01:17:35,360 --> 01:17:37,160 SECONDLY, VERY IMPORTANTLY THERE 1920 01:17:37,160 --> 01:17:40,120 NEEDS TO BE A THIRD PARTY 1921 01:17:40,120 --> 01:17:41,960 OVERSIGHT COMMITTEE MANAGING 1922 01:17:41,960 --> 01:17:45,000 STILLBIRTHS AND FOR 1923 01:17:45,000 --> 01:17:46,120 INVESTIGATIONS AFTERWOIRDS WON'T 1924 01:17:46,120 --> 01:17:48,160 EXPECT CEO OF SHELL TO HEAD UP 1925 01:17:48,160 --> 01:17:51,480 THE EPA. NEXT SLIDE, PLEASE. 1926 01:17:51,480 --> 01:17:59,600 WE HAVE TO CREATE A MANDATED 1927 01:17:59,600 --> 01:18:02,680 WRIGHT AND PROCESS. 1928 01:18:02,680 --> 01:18:04,920 EXISTING MEDICAID AND INSURANCES 1929 01:18:04,920 --> 01:18:06,920 PREVENT WOMEN FROM GITTING A 1930 01:18:06,920 --> 01:18:08,480 SECOND OPINION AND HIGHLIGHTED 1931 01:18:08,480 --> 01:18:10,760 BY CDC AND THERE IS NO CURRENT 1932 01:18:10,760 --> 01:18:13,640 PROCESS FOR DOING THAT AND 1933 01:18:13,640 --> 01:18:18,120 ANOTHER ISSUE IN MIND IS OBGYNS 1934 01:18:18,120 --> 01:18:21,920 NOT REQUIRED TO HAVE NST 1935 01:18:21,920 --> 01:18:23,800 CERTIFICATIONS AND MANDATED 1936 01:18:23,800 --> 01:18:26,960 COVERAGE FOR AUTOPSIES ACROSS 1937 01:18:26,960 --> 01:18:28,840 MEDICAID AND COMMERCIAL 1938 01:18:28,840 --> 01:18:31,000 INSURANCE IS CRITICAL AND 1939 01:18:31,000 --> 01:18:32,880 PREVENTING ANOTHER STILLBIRTH 1940 01:18:32,880 --> 01:18:34,360 AND MATERNAL HEALTH IN GENERAL 1941 01:18:34,360 --> 01:18:36,640 AND MENTAL HEALTH AND 1942 01:18:36,640 --> 01:18:38,080 UNDERSTANDING YOUR CHILD'S 1943 01:18:38,080 --> 01:18:38,760 STORY. THANK YOU. 1944 01:18:38,760 --> 01:18:43,400 >> THANK YOU, MEREDITH. 1945 01:18:43,400 --> 01:18:46,120 THANK YOU. 1946 01:18:46,120 --> 01:18:46,600 >> THANKS. 1947 01:18:46,600 --> 01:18:53,080 >> SO, I WILL NOW TURN TO 1948 01:18:53,080 --> 01:19:00,560 JASMINE ABRAHAM FROM COUNT THE 1949 01:19:00,560 --> 01:19:03,880 KICKS. JASMINE, YOU BROUGHT 1950 01:19:03,880 --> 01:19:05,840 SLIDES SO WILL BRING THEM UP FOR 1951 01:19:05,840 --> 01:19:07,200 YOU IF YOU ARE WITH US. 1952 01:19:07,200 --> 01:19:09,200 >> YES, PLEASE. CAN YOU HEAR 1953 01:19:09,200 --> 01:19:09,560 ME? 1954 01:19:09,560 --> 01:19:10,120 >> YES. 1955 01:19:10,120 --> 01:19:10,680 >> GREAT. 1956 01:19:10,680 --> 01:19:13,120 >> JUST ASK TO BE RESPECTFUL OF 1957 01:19:13,120 --> 01:19:13,720 TIME. 1958 01:19:13,720 --> 01:19:14,160 >> ABSOLUTELY. 1959 01:19:14,160 --> 01:19:18,000 >> I WILL TURN IT TO YOU, 1960 01:19:18,000 --> 01:19:18,240 PLEASE. 1961 01:19:18,240 --> 01:19:19,400 >> GREAT. 1962 01:19:19,400 --> 01:19:21,560 HI, EVERYONE. WE WILL START OUT 1963 01:19:21,560 --> 01:19:24,520 HERE WITH A PAGE OF OUR BABY 1964 01:19:24,520 --> 01:19:24,920 [INDISCERNIBLE]. 1965 01:19:24,920 --> 01:19:28,840 WE WANT TO TALK ABOUT 1966 01:19:28,840 --> 01:19:29,200 PREVENTION. 1967 01:19:29,200 --> 01:19:31,760 I APPRECIATE YOU ALL BEING HAD 1968 01:19:31,760 --> 01:19:33,120 HERE AND BEING WILLING TO LISTEN 1969 01:19:33,120 --> 01:19:35,000 TO OUR STORIES AND UNDERSTANDING 1970 01:19:35,000 --> 01:19:36,680 THERE IS SOMETHING AND A 1971 01:19:36,680 --> 01:19:38,240 SOLUTION THAT IS ALREADY OUT 1972 01:19:38,240 --> 01:19:39,680 THERE RIGHT NOW HELPING 1973 01:19:39,680 --> 01:19:41,080 STILLBIRTHS IN AMERICA. LOOK AT 1974 01:19:41,080 --> 01:19:42,920 FACES OF THESE BABIES AND 1975 01:19:42,920 --> 01:19:44,160 DOCTORS THAT DELIVERED THEM SAY 1976 01:19:44,160 --> 01:19:46,320 THAT COUNT THE KICKS IS WHAT 1977 01:19:46,320 --> 01:19:49,560 HELPED THEM BRING THESE BABIES 1978 01:19:49,560 --> 01:19:50,840 AND DELIVER THEM SAFELY. 1979 01:19:50,840 --> 01:19:52,840 MANY WOMEN THAT USED THE APP 1980 01:19:52,840 --> 01:19:53,960 SPOKE UP AND DOCTORS LISTENED 1981 01:19:53,960 --> 01:19:56,400 AND BECAUSE OF IT THAT YOU SEE 1982 01:19:56,400 --> 01:19:59,760 THESE BEAUTIFUL FACES. I'M 1983 01:19:59,760 --> 01:20:02,520 JASMINE ABRAHAM AND AMBASSADOR 1984 01:20:02,520 --> 01:20:05,120 FOR OHIO COUNT THE KICKS AND 1985 01:20:05,120 --> 01:20:08,160 HAPPY TO BE HERE SPEAKING ON 1986 01:20:08,160 --> 01:20:10,080 BEHALF OF OUR ORGANIZATION. 1987 01:20:10,080 --> 01:20:12,720 NEXT SLIDE, PLEASE. 1988 01:20:12,720 --> 01:20:16,120 ANY WA, WE HAVE HEARD FROM -- I 1989 01:20:16,120 --> 01:20:16,520 APOLOGIZE. 1990 01:20:16,520 --> 01:20:18,120 IT IS A PROVEN STILLBIRTH 1991 01:20:18,120 --> 01:20:19,760 PREVENTION ORGANIZATION IN THE 1992 01:20:19,760 --> 01:20:21,800 US THAT HAS EVIDENCE-BASED COUNT 1993 01:20:21,800 --> 01:20:25,120 THE KICKS CAMPAIGN. 1994 01:20:25,120 --> 01:20:28,080 THIS HAS HELPED SAVE BABIES IN 1995 01:20:28,080 --> 01:20:31,200 33 DIFFERENT STATES IN 5 1996 01:20:31,200 --> 01:20:32,440 DIFFERENT COUNTRIES SO FAR. 1997 01:20:32,440 --> 01:20:35,760 NEXT SLIDE, PLEASE. 1998 01:20:35,760 --> 01:20:37,400 ANY WA WHERE KROUNLT THE KICKS 1999 01:20:37,400 --> 01:20:40,520 BEGAN EXPERIENCED A 32% 2000 01:20:40,520 --> 01:20:43,200 REDUCTION IF IN STILLBIRTH FROM 2001 01:20:43,200 --> 01:20:46,000 2008 TO 2018 AND TODAY THEY 2002 01:20:46,000 --> 01:20:49,680 CONTINUE TO MAINTAIN NEAR 2003 01:20:49,680 --> 01:20:52,920 HISTORIC LOW STILLBIRTH RATE. 2004 01:20:52,920 --> 01:20:56,120 THERE IS TEEL DOTS AND AMERICA'S 2005 01:20:56,120 --> 01:20:58,800 STILLBIRTH RATE IS IN RED LINE 2006 01:20:58,800 --> 01:21:03,840 IN COMPARISON. WORKING WITH 2007 01:21:03,840 --> 01:21:06,000 IOWA -- OBSTETRICIANS TO ACHIEF 2008 01:21:06,000 --> 01:21:07,920 REDUCTION AS WELL AS OUTREACH TO 2009 01:21:07,920 --> 01:21:10,200 MOMS AND IN FIRST 5 YEARS OF 2010 01:21:10,200 --> 01:21:11,080 IMPLEMENTATION OF COUNT THE 2011 01:21:11,080 --> 01:21:13,400 KICKS THEY WERE ABLE TO REDUCE A 2012 01:21:13,400 --> 01:21:16,720 30 -- STILLBIRTH RATE BY 39%. 2013 01:21:16,720 --> 01:21:19,480 AND ESPECIALLY THAT WAS 2014 01:21:19,480 --> 01:21:23,000 SPECIFICALLY AMONG BLACK WOMEN. 2015 01:21:23,000 --> 01:21:24,240 ALEXANDER HAZEL IS PROMINENT 2016 01:21:24,240 --> 01:21:28,120 STILLBIRTH RESEARCHER FROM 2017 01:21:28,120 --> 01:21:29,960 MANCHESTER UNITED KINGDOM 2018 01:21:29,960 --> 01:21:31,960 PUBLISHING PAPER ON FETAL 2019 01:21:31,960 --> 01:21:34,840 MOVEMENT AND RECENTLY STUDIED 2020 01:21:34,840 --> 01:21:37,600 IOWA DATA COMING OUT REGARDING 2021 01:21:37,600 --> 01:21:41,880 COUNT THE KICKS COMPARING THEM 2022 01:21:41,880 --> 01:21:44,720 TO NEIGHBORING STATES WITH MUCH 2023 01:21:44,720 --> 01:21:46,400 HIGHER STILLBIRTH RATE. NEXT 2024 01:21:46,400 --> 01:21:49,960 SLIDE HAS A VIDEO. 2025 01:21:49,960 --> 01:21:51,520 >> IT IS REALLY IMPORTANT WE 2026 01:21:51,520 --> 01:21:53,840 LOOK AT IT IN CONTEXT OF 2027 01:21:53,840 --> 01:21:55,080 AMERICAN STILLBIRTH RATE. WE 2028 01:21:55,080 --> 01:21:56,160 KNOW THAT THE UNITED STATES OF 2029 01:21:56,160 --> 01:21:58,960 AMERICA HAS ONE OF THE HIGHEST 2030 01:21:58,960 --> 01:22:01,560 STILLBIRTH RATES IN HIGH INCOME 2031 01:22:01,560 --> 01:22:02,760 COUNTRIES AND ALSO SADLY ONE OF 2032 01:22:02,760 --> 01:22:06,160 THE LOWEST RATES OF IMPROVEMENT. 2033 01:22:06,160 --> 01:22:07,120 OVERALL UNITED STATES STILLBIRTH 2034 01:22:07,120 --> 01:22:11,400 RATE IS ONLY GOING DOWN AT NOT 2035 01:22:11,400 --> 01:22:14,800 .8% PER YEAR BETWEEN 2000 AND 2036 01:22:14,800 --> 01:22:15,520 2015. 2037 01:22:15,520 --> 01:22:18,280 SO, BEING ABLE TO DEMONSTRATE 2038 01:22:18,280 --> 01:22:21,640 THAT WE HAVE GOT A RATE GOING 2039 01:22:21,640 --> 01:22:23,920 DOWN 1% EVERY THREE MONTHS ANY 2040 01:22:23,920 --> 01:22:27,480 WA IS MUCH FASTER THAN THE 2041 01:22:27,480 --> 01:22:28,800 UNITED STATES POPULATION AVERAGE 2042 01:22:28,800 --> 01:22:30,880 TELLS US SOMETHING IS HAPPENING 2043 01:22:30,880 --> 01:22:33,120 ANY WA THAT IS NOT NECESSARILY 2044 01:22:33,120 --> 01:22:40,120 HAPPENING IN THE REST OF THE 2045 01:22:40,120 --> 01:22:44,120 UNITED STATESIN IOWA THAT IS NO 2046 01:22:44,120 --> 01:22:44,720 HAPPENING IN THE REST OF THE 2047 01:22:44,720 --> 01:22:45,800 UNITED STATES. 2048 01:22:45,800 --> 01:22:47,080 >> THAT IS TRUE. SOMETHING IS 2049 01:22:47,080 --> 01:22:49,320 HAPPENING IN IOWA THEY ARE FULLY 2050 01:22:49,320 --> 01:22:51,120 ENDORSING THE COUNT THE KICKS 2051 01:22:51,120 --> 01:22:52,800 CAMPAIGN. A LITTLE ABOUT ME, I 2052 01:22:52,800 --> 01:22:53,800 LEARNED ABOUT THE INFORMATION A 2053 01:22:53,800 --> 01:22:56,400 LITTLE TOO LATE. I ASKED DOCTOR 2054 01:22:56,400 --> 01:22:58,880 IN THIRD TRIMESTER APPS TOLD ME 2055 01:22:58,880 --> 01:23:01,080 TO START COUNTING KICKS WHETHER 2056 01:23:01,080 --> 01:23:02,440 COUNTING KICKS WAS ACTUALLY A 2057 01:23:02,440 --> 01:23:04,720 THING I SHOULD BE DOING. SHE 2058 01:23:04,720 --> 01:23:06,640 TOLD ME MY BABY WAS ACTIVE SO I 2059 01:23:06,640 --> 01:23:08,120 DIDN'T NEED TO WORRY ABOUT IT. 2060 01:23:08,120 --> 01:23:10,960 I LEARNED TO IGNORE MY SON'S 2061 01:23:10,960 --> 01:23:12,560 KICKS THAT WERE VERY PAINFUL AND 2062 01:23:12,560 --> 01:23:17,080 HE WAS VERY ACTIVE. CDC'S HEAR 2063 01:23:17,080 --> 01:23:19,360 HER CAMPAIGN LIST A CHANGE IN 2064 01:23:19,360 --> 01:23:23,320 BABY'S MOVEMENTS AS ONE OF 15 2065 01:23:23,320 --> 01:23:26,840 URGENT MATERNAL WARNING SIGNS 2066 01:23:26,840 --> 01:23:29,080 DIDN'T TELL WHY HOW HOAR TO 2067 01:23:29,080 --> 01:23:31,400 MONITOR THAT YOUR BABY IS 2068 01:23:31,400 --> 01:23:32,280 NORMAL. 2069 01:23:32,280 --> 01:23:34,920 OUR SON WAS BORN STILL AT 37 2070 01:23:34,920 --> 01:23:38,680 WEEKS IN JUNE OF 2020. I DON'T 2071 01:23:38,680 --> 01:23:40,920 THINK YOU CAN IMAGINE HOW 2072 01:23:40,920 --> 01:23:43,880 INCREDIBLY HARD IT WAS TO PICK 2073 01:23:43,880 --> 01:23:46,720 UP THE DIRT TO PUT ON MY SON'S 2074 01:23:46,720 --> 01:23:48,800 GRAVE. THIS WAS MY FIRST BABY. 2075 01:23:48,800 --> 01:23:51,080 THIS WAS MY FIRST PREGNANCY. 2076 01:23:51,080 --> 01:23:52,800 THIS IS THE OUTCOME. 2077 01:23:52,800 --> 01:23:55,960 I DIDN'T EVEN KNOW WHAT THE TERM 2078 01:23:55,960 --> 01:23:57,640 STILLBIRTH WAS UNTIL I WAS 2079 01:23:57,640 --> 01:24:02,160 HAVING ONE. NEXT SLIDE, PLEASE. 2080 01:24:02,160 --> 01:24:04,120 THE EVIDENCE-BASED COUNT THE 2081 01:24:04,120 --> 01:24:06,680 KICKS CAMPAIGN EDUCATES AND 2082 01:24:06,680 --> 01:24:09,280 EMPOWERS EXPECTANT PARENTSES TO 2083 01:24:09,280 --> 01:24:11,080 MONITOR BABY'S MOVEMENTS EVERY 2084 01:24:11,080 --> 01:24:12,760 DAY IN THIRD TRIMESTER AND AT 2085 01:24:12,760 --> 01:24:14,880 SAME TIME TO SPEAK UP IF THEY 2086 01:24:14,880 --> 01:24:16,760 NOTICE A CHANGE. IF I PRACTICED 2087 01:24:16,760 --> 01:24:18,960 KICK COUNTING I WOULD HAVE 2088 01:24:18,960 --> 01:24:20,680 REALIZED HE WASN'T MOVING AND 2089 01:24:20,680 --> 01:24:22,080 MAYBE WOE HAVE BEEN WITH ME 2090 01:24:22,080 --> 01:24:25,120 TODAY. NEXT SLIDE, PLEASE. 2091 01:24:25,120 --> 01:24:27,120 RESEARCH SHOWS THAT MORE THAN 2092 01:24:27,120 --> 01:24:30,640 HALF OF ALL STILLBIRTHS MOMS 2093 01:24:30,640 --> 01:24:32,800 NOTICE A CHANGE IN THEIR BABY'S 2094 01:24:32,800 --> 01:24:35,560 MOVEMENTS BEFORE THE BABY DIES 2095 01:24:35,560 --> 01:24:38,080 AND -- PROGRAMS ACROSS COUNTRY 2096 01:24:38,080 --> 01:24:39,880 TELL US TOO MANY MOMS WERE LIKE 2097 01:24:39,880 --> 01:24:42,080 ME AND DON'T KNOW THIS IS AN 2098 01:24:42,080 --> 01:24:43,920 IMPORTANT WARNING SIGN. NEXT 2099 01:24:43,920 --> 01:24:44,520 SLIDE, PLEASE. 2100 01:24:44,520 --> 01:24:47,080 WHEN MOMS ARE EDUCATED AND 2101 01:24:47,080 --> 01:24:48,800 EMPOWERED YOU ARE SPEAKING ABOUT 2102 01:24:48,800 --> 01:24:50,520 CHANGE IN MOVEMENTS AND YOU GET 2103 01:24:50,520 --> 01:24:52,920 A CHANCE TO INVESTIGATE AND 2104 01:24:52,920 --> 01:24:55,880 INTERVENE IF NECESSARY. 2105 01:24:55,880 --> 01:24:56,840 NEXT SLIDE, PLEASE. 2106 01:24:56,840 --> 01:24:58,680 BRIGHT YELLOW POSTERS AND 2107 01:24:58,680 --> 01:25:00,040 [INDISCERNIBLE] HAVE BEEN 2108 01:25:00,040 --> 01:25:01,840 CREATED FOR PROGRAM TO SPARK 2109 01:25:01,840 --> 01:25:04,120 KICK COUNTING CONVERSATION AND 2110 01:25:04,120 --> 01:25:05,600 THEY CATCH YOUR EYE AND BEING 2111 01:25:05,600 --> 01:25:07,880 ABLE TO TALK OPENLY WITH YOUR 2112 01:25:07,880 --> 01:25:08,840 PROVIDER IN UNDERSTANDING THAT 2113 01:25:08,840 --> 01:25:10,880 THIS IS A WAY TO GET TO KNOW 2114 01:25:10,880 --> 01:25:12,680 YOUR BABY AND TO BOND WITH YOUR 2115 01:25:12,680 --> 01:25:15,400 BABY HELPS TO PUT IT INTO A NOT 2116 01:25:15,400 --> 01:25:17,280 SO SCARY LIGHT. 2117 01:25:17,280 --> 01:25:18,680 NEXT SLIDE, PLEASE. 2118 01:25:18,680 --> 01:25:21,080 >> JASMINE, I WILL NEED TO ASK 2119 01:25:21,080 --> 01:25:22,560 YOU TO WRAP UP, PLEASE. 2120 01:25:22,560 --> 01:25:26,400 >> OKAY. I'M SO SORRY. I 2121 01:25:26,400 --> 01:25:28,120 COULDN'T TELL THAT YOU DIDN'T 2122 01:25:28,120 --> 01:25:31,040 POP UP. IF WE CAN SCROLL DOWN A 2123 01:25:31,040 --> 01:25:35,080 FEW SLIDES TO THE AMBASSADOR 2124 01:25:35,080 --> 01:25:35,560 PAGE? 2125 01:25:35,560 --> 01:25:37,920 >> THAT IS MY LITTLE RAINBOW. 2126 01:25:37,920 --> 01:25:39,960 THESE ARE THE WOMEN WORKING 2127 01:25:39,960 --> 01:25:41,240 ALONGSIDE OF ME. I SO 2128 01:25:41,240 --> 01:25:42,920 APPRECIATE YOU GUYS SPENDING 2129 01:25:42,920 --> 01:25:45,080 TIME LISTENING TO ALL OF US AND 2130 01:25:45,080 --> 01:25:47,080 KNOW THESE STORIES ARE HARD TO 2131 01:25:47,080 --> 01:25:48,680 HEAR AND TRUST ME. THEY ARE 2132 01:25:48,680 --> 01:25:51,120 EVEN HARDER TO TELL. THANK YOU 2133 01:25:51,120 --> 01:25:52,080 ALL FOR YOUR TIME. 2134 01:25:52,080 --> 01:25:56,240 >> THANK YOU, JASMINE. 2135 01:25:56,240 --> 01:25:57,680 AND I DO APPRECIATE THAT THERE 2136 01:25:57,680 --> 01:25:59,560 ARE OTHERS FROM COUNT THE KICKS 2137 01:25:59,560 --> 01:26:01,440 WHO ARE ALSO SPEAKING. THANK 2138 01:26:01,440 --> 01:26:07,320 YOU ALL FOR JOINING US TODAY. 2139 01:26:07,320 --> 01:26:11,280 SO, IF ALLIE FELKER IS WITH US? 2140 01:26:11,280 --> 01:26:12,120 >> I'M HERE. 2141 01:26:12,120 --> 01:26:14,160 >> OKAY. I WILL YIELD TO YOU 2142 01:26:14,160 --> 01:26:15,240 FOR THREE MINUTES. 2143 01:26:15,240 --> 01:26:16,680 THANKS SO MUCH FOR JOINING US. 2144 01:26:16,680 --> 01:26:19,560 >> THANKS SO MUCH. I'M ALLIE 2145 01:26:19,560 --> 01:26:22,880 AND SPEAKING IN HONOR OF MY SON 2146 01:26:22,880 --> 01:26:24,960 HANK WHO WAS STILLBORN ON JULY 2147 01:26:24,960 --> 01:26:27,680 1ST, 2020. DAY BEFORE HE DIED I 2148 01:26:27,680 --> 01:26:30,360 WENT IN FOR REDUCED FETAL 2149 01:26:30,360 --> 01:26:33,360 MOVEMENT GIVEN AN ULTRASOUND 2150 01:26:33,360 --> 01:26:35,000 WHERE ULTRASOUND TECH HAD ME 2151 01:26:35,000 --> 01:26:36,920 JUMPING UP AND DOWN AND COUNTING 2152 01:26:36,920 --> 01:26:38,320 CHANGE IN FOOT POSITION WHICH 2153 01:26:38,320 --> 01:26:39,760 WAS MOVEMENT I KNOW IS INCORRECT 2154 01:26:39,760 --> 01:26:43,120 WAY TO PERFORM ABPP. I WAS 2155 01:26:43,120 --> 01:26:44,760 NEVER EDUCATED ON IMPORTANCE OF 2156 01:26:44,760 --> 01:26:46,440 FETAL MOVEMENT OR WHAT IT COULD 2157 01:26:46,440 --> 01:26:48,360 MEAN FOR MOVEMENTS TO SLOW DOWN 2158 01:26:48,360 --> 01:26:50,320 OR IN MY CASE STOP. I WAS NEVER 2159 01:26:50,320 --> 01:26:53,080 TOLD THAT A HEALTHY NORMAL 2160 01:26:53,080 --> 01:26:55,760 PREGNANCY COULD END IN DEATH. 2161 01:26:55,760 --> 01:26:59,800 WHEN MINE DID MY PROVIDER 2162 01:26:59,800 --> 01:27:01,600 SHRUGGED HER SHOULDERS AND TOLD 2163 01:27:01,600 --> 01:27:04,120 ME SOMETIMES THESE THINGS 2164 01:27:04,120 --> 01:27:05,320 HAPPEN. YOU MIGHT NEVER FIND A 2165 01:27:05,320 --> 01:27:07,520 CAUSE. SHE WAS WRONG. THERE 2166 01:27:07,520 --> 01:27:10,160 WAS A CAUSE. HAD MY PRAG NANCY 2167 01:27:10,160 --> 01:27:13,560 ADHERED TO A STANDARD OF CARE MY 2168 01:27:13,560 --> 01:27:14,360 SON'S DEATH COULD HAVE BEEN 2169 01:27:14,360 --> 01:27:17,800 REVENTED ADDING INSULT TO 2170 01:27:17,800 --> 01:27:19,440 INJURY, CORRECT CAUSE OF DEATH 2171 01:27:19,440 --> 01:27:21,400 WAS NEVER FILED. AS A RESULT 2172 01:27:21,400 --> 01:27:23,480 I'M CURRENTLY PREGNANT WITH 2173 01:27:23,480 --> 01:27:25,880 THIRD CHILD AND NOW SPEND NEARLY 2174 01:27:25,880 --> 01:27:26,960 EVERY SINGLE APPOINTMENT 2175 01:27:26,960 --> 01:27:29,360 CORRECTING THE CAUSE OF MY SON'S 2176 01:27:29,360 --> 01:27:31,160 STILLBIRTH IN MY HEALTH HISTORY. 2177 01:27:31,160 --> 01:27:32,720 I WANT YOU TO TAKE A MOMENT AND 2178 01:27:32,720 --> 01:27:35,560 TO PUT YOURSELF IN MY SHOES. 2179 01:27:35,560 --> 01:27:37,360 MANY OF YOU HAVE CHILDREN. I 2180 01:27:37,360 --> 01:27:40,120 WANT YOU TO IMAGINE THAT EITHER 2181 01:27:40,120 --> 01:27:42,600 YOUR PREGNANCY OR YOUR PARTNER'S 2182 01:27:42,600 --> 01:27:43,840 PREGNANCY. I DID THE RIGHT 2183 01:27:43,840 --> 01:27:48,840 THING. I WEPT IN. I HAD THE 2184 01:27:48,840 --> 01:27:50,080 ULTRASOUND AND ULTRASOUND TECH 2185 01:27:50,080 --> 01:27:53,040 MADE IT SEEM I WAS AN OVERLY 2186 01:27:53,040 --> 01:27:54,600 CONCERNED PARENT AND SHE KNEW MY 2187 01:27:54,600 --> 01:27:56,000 CHILD BETTER THAN I DID. BEING 2188 01:27:56,000 --> 01:27:58,520 MADE TO FEEL A PROVIDER KNOWS 2189 01:27:58,520 --> 01:28:00,240 MORE ABOUT YOUR BODY THAN YOU DO 2190 01:28:00,240 --> 01:28:02,520 AND REALIZING THOSE PROVIDERS 2191 01:28:02,520 --> 01:28:04,520 WERE WRONG AND THEIR WRONG 2192 01:28:04,520 --> 01:28:06,480 DECISIONS LED TO THE DEATH OF 2193 01:28:06,480 --> 01:28:07,800 YOUR CHILD IS A PAIN NO PARENT 2194 01:28:07,800 --> 01:28:10,200 SHOULD HAVE TO ENDURE. YET, I 2195 01:28:10,200 --> 01:28:12,280 HEAR THE SAME STORY EVERY DAY AS 2196 01:28:12,280 --> 01:28:14,480 AN ADVOCATE WITH PUSH PARENTS 2197 01:28:14,480 --> 01:28:16,400 ARE MADE TO FEEL CRAZY AS THEY 2198 01:28:16,400 --> 01:28:17,840 BRING UP THEIR CONCERNS. 2199 01:28:17,840 --> 01:28:20,000 YOU HAVE HEARD ABOUT THE RACISM 2200 01:28:20,000 --> 01:28:23,120 THAT PERPETUATES LO S FOR BIPOC 2201 01:28:23,120 --> 01:28:24,280 FAMILY AND BRINGING YOUR 2202 01:28:24,280 --> 01:28:26,200 ATTENTION TO A SYSTEM THAT PLAYS 2203 01:28:26,200 --> 01:28:28,840 INTO THIS THAT IS SYSTEM OF 2204 01:28:28,840 --> 01:28:30,840 PATERNALISM. AS A RESULT I HAVE 2205 01:28:30,840 --> 01:28:32,680 THREE ASKS OF YOU, FIRST, ASK 2206 01:28:32,680 --> 01:28:34,280 YOU LOOK AT YOUR OWN PRACTICES 2207 01:28:34,280 --> 01:28:36,840 AND HAVE HUMILITY TO IDENTIFY 2208 01:28:36,840 --> 01:28:39,720 RACISM AND PATERNALISM. 2209 01:28:39,720 --> 01:28:40,840 SYSTEMATIC CHANGE BEGINS WITH 2210 01:28:40,840 --> 01:28:42,760 THE INDIVIDUAL. WE ALL NEED TO 2211 01:28:42,760 --> 01:28:45,560 LOOK INSIDE OF OURSELVES. 2212 01:28:45,560 --> 01:28:49,480 SECOND, I ASK YOU LOOK AT THE 2213 01:28:49,480 --> 01:28:52,160 NIH'S HISTORY WITH SIDS 2214 01:28:52,160 --> 01:28:53,080 IMPLEMENTATION SCIENCE AND 2215 01:28:53,080 --> 01:28:54,880 INFORMATION CAMPAIGNS HAVE SAVED 2216 01:28:54,880 --> 01:28:56,440 THOUSANDS OF LIVES. PLEASE LOOK 2217 01:28:56,440 --> 01:28:58,360 AT YOUR SUCCESSES AND DECIDE HOW 2218 01:28:58,360 --> 01:29:00,280 YOU CAN BUILD UPON THOSE 2219 01:29:00,280 --> 01:29:03,480 SUCCESSES TO SAVE BABIES LIVES 2220 01:29:03,480 --> 01:29:05,640 IN TERMS OF STILLBIRTH AND 2221 01:29:05,640 --> 01:29:08,960 PLEASE TELL CONGRESS IT IS 2222 01:29:08,960 --> 01:29:11,080 IMPERATIVE WE FIX DATA 2223 01:29:11,080 --> 01:29:13,240 COLLECTION SYSTEM FOR 2224 01:29:13,240 --> 01:29:15,920 STILLBIRTH. I GIVE MY TIME AND 2225 01:29:15,920 --> 01:29:17,120 ENERGY BECAUSE IT IS NOT TOO 2226 01:29:17,120 --> 01:29:19,160 LATE FOR OTHER BABIES. 2227 01:29:19,160 --> 01:29:22,520 >> THANK YOU SO MUCH ALLIE FOR 2228 01:29:22,520 --> 01:29:23,000 YOUR COMMENTS. 2229 01:29:23,000 --> 01:29:27,520 THIS DEFINITELY WILL BE 2230 01:29:27,520 --> 01:29:30,160 MENTIONED. I THINK IF WE -- WE 2231 01:29:30,160 --> 01:29:32,440 CANNOT TELL CONGRESS BUT YOU CAN 2232 01:29:32,440 --> 01:29:34,160 TELL CONGRESS. WE APPRECIATE. 2233 01:29:34,160 --> 01:29:36,120 >> BELIEVE ME, WE WILL. 2234 01:29:36,120 --> 01:29:41,080 >> I KNOW YOU WILL. THANK YOU. 2235 01:29:41,080 --> 01:29:44,400 SO, NOW I WILL TURN TO BOBBY 2236 01:29:44,400 --> 01:29:46,400 COLON AND HOPING I'M SAYING THAT 2237 01:29:46,400 --> 01:29:48,520 NAME CORRECTLY AND BOBBEE PLEASE 2238 01:29:48,520 --> 01:29:52,560 CORRECT ME IF I SAY IT 2239 01:29:52,560 --> 01:29:52,920 INCORRECTLY. 2240 01:29:52,920 --> 01:29:53,560 >> [INDISCERNIBLE] I'M HERE WITH 2241 01:29:53,560 --> 01:29:56,800 ME HUSBAND. WE ARE LOST 2242 01:29:56,800 --> 01:29:57,280 GRANDPARENTS. 2243 01:29:57,280 --> 01:30:00,560 JANUARY 23RD, 2013, PREGNANT 2244 01:30:00,560 --> 01:30:02,440 DAUGHTER TOLD ME THAT THE BABY 2245 01:30:02,440 --> 01:30:05,040 WASN'T MOVING AS MUCH. I DON'T 2246 01:30:05,040 --> 01:30:06,400 KNOW. OKAY. BUT SHE READ ON 2247 01:30:06,400 --> 01:30:08,760 THE INTERNET THAT BABIES DON'T 2248 01:30:08,760 --> 01:30:10,680 MOVE SO MUCH IN THE LAST 2249 01:30:10,680 --> 01:30:13,080 TRIMESTER AND NEXT DAY I WAS 2250 01:30:13,080 --> 01:30:15,560 WITH HER AT REGULAR 35 WEEK 2251 01:30:15,560 --> 01:30:18,560 CHECKUP AND DR. ASKED IS BABY 2252 01:30:18,560 --> 01:30:21,280 MOVING AND DAUGHTER SAID YES BUT 2253 01:30:21,280 --> 01:30:23,120 LESS AND OB SAID WHAT INTERNET 2254 01:30:23,120 --> 01:30:25,200 SAID THAT BABIES DON'T MOVE SO 2255 01:30:25,200 --> 01:30:28,160 MUCH IN LAST TRIMESTER FOLLOWING 2256 01:30:28,160 --> 01:30:29,160 ULTRASOUND AT THIS APPOINTMENT 2257 01:30:29,160 --> 01:30:31,760 TOGETHER WE HEARD THE WORDS I AM 2258 01:30:31,760 --> 01:30:33,640 SORRY. THERE IS NO HEARTBEAT. 2259 01:30:33,640 --> 01:30:36,000 DAUGHTER WAS INDUCED DELIVERING 2260 01:30:36,000 --> 01:30:38,160 DEAD BABY NEXT DAY IN EARLY 2261 01:30:38,160 --> 01:30:40,520 MORNING OF JANUARY 25TH 2013 2262 01:30:40,520 --> 01:30:42,680 WITH HUSBAND BY HER SIDE. WHY 2263 01:30:42,680 --> 01:30:44,680 WASN'T OUR DAUGHTER TOLD ABOUT 2264 01:30:44,680 --> 01:30:46,280 TRACKING BABY'S MOVEMENTS AND 2265 01:30:46,280 --> 01:30:49,640 WHY WOULD OB GIVE SAME FALSE 2266 01:30:49,640 --> 01:30:50,920 INFORMATION THAT DAUGHTER FOUND 2267 01:30:50,920 --> 01:30:53,520 ON INTERNET. QUOTE HEALTHY 2268 01:30:53,520 --> 01:30:55,120 PREGNANCIES AND HEALTHY CHILDREN 2269 01:30:55,120 --> 01:30:56,360 AND HEALTHY AND OPTIMAL LIVES 2270 01:30:56,360 --> 01:31:01,760 ARE GOALS FOUND OF THE NICHD 2271 01:31:01,760 --> 01:31:03,800 WEBSITE. THESE GOALS MUST 2272 01:31:03,800 --> 01:31:06,760 INCLUDE IN INCIDENTS OF PREVENT 2273 01:31:06,760 --> 01:31:08,040 BABLE STILLBIRTHS MEDICAL 2274 01:31:08,040 --> 01:31:09,800 PROVIDERS AND ELECTED OFUSHLS 2275 01:31:09,800 --> 01:31:12,160 HAVE RESOURCES EMPOWERED TO 2276 01:31:12,160 --> 01:31:15,120 LOWER INCIDENCE OF STILLBIRTH 2277 01:31:15,120 --> 01:31:18,280 GRANDSON OLIVER RESTS ETERNALLY. 2278 01:31:18,280 --> 01:31:21,040 WHAT YOU DO AT NICHD CANNOT 2279 01:31:21,040 --> 01:31:22,640 BRING HIM BACK. BECAUSE WE KNOW 2280 01:31:22,640 --> 01:31:25,360 PAIN OF HAVING HAD A BABY DIE WE 2281 01:31:25,360 --> 01:31:28,120 DON'T WANT THAT FOR OTHER 2282 01:31:28,120 --> 01:31:28,600 FAMILIES. 2283 01:31:28,600 --> 01:31:32,560 23,000 OTHER FAMILIES THAT WILL 2284 01:31:32,560 --> 01:31:34,640 SADLY JOIN THIS CLUB THIS YOOER, 2285 01:31:34,640 --> 01:31:36,640 LAST YEAR, AND NEXT YEAR IF YOU 2286 01:31:36,640 --> 01:31:39,080 DON'T DO ANYTHING TO CHANGE THIS 2287 01:31:39,080 --> 01:31:40,800 STATISTIC, A STATISTIC THAT 2288 01:31:40,800 --> 01:31:43,240 HASN'T CHANGED IN YEARS AND I 2289 01:31:43,240 --> 01:31:45,400 AND MY FAMILY CAN NO LONGER BE 2290 01:31:45,400 --> 01:31:47,440 EXCITED WHEN SOMEBODY ANNOUNCES 2291 01:31:47,440 --> 01:31:49,520 THEIR PREGNANCY AND KNOW THAT 2292 01:31:49,520 --> 01:31:50,520 STILLBIRTH CAN HAPPEN TO ANYONE 2293 01:31:50,520 --> 01:31:52,880 LIKE IT HAPPENED TO HEALTHY AND 2294 01:31:52,880 --> 01:31:55,560 FIT DAUGHTER AND KNOW STIL 2295 01:31:55,560 --> 01:31:58,320 BIRTHS CAN BE PREVENTED RESEARCH 2296 01:31:58,320 --> 01:32:01,760 HAS SHOWN THAT DAUGHTER AND SON 2297 01:32:01,760 --> 01:32:04,000 IN LAW WERE FORTUNATE ONES IF 2298 01:32:04,000 --> 01:32:06,800 YOU CAN CALL IT THAT RECOMMENDED 2299 01:32:06,800 --> 01:32:10,800 AUTOPSY PAID BY HOSPITAL AND -- 2300 01:32:10,800 --> 01:32:12,440 MOST COUNTIES HAVE NONE AFTER 2301 01:32:12,440 --> 01:32:14,240 WAITING SEVERAL MONTHS RESULT TO 2302 01:32:14,240 --> 01:32:18,240 BE FETAL MATERNAL HEMORRHAGE 2303 01:32:18,240 --> 01:32:20,280 MEETING WITH OB AND PATHOLOGIST. 2304 01:32:20,280 --> 01:32:22,560 OB HAD FOUR CASES OF STIL BIRTH 2305 01:32:22,560 --> 01:32:26,440 THAT WERE ALL CAUSED BY FMH. 2306 01:32:26,440 --> 01:32:28,080 HOWEVER THERE IS NOT MUCH 2307 01:32:28,080 --> 01:32:30,560 RESEARCH ABOUT THESE CAUSES MANY 2308 01:32:30,560 --> 01:32:31,520 DOCTORS DIDN'T STUS IMPORTANCE 2309 01:32:31,520 --> 01:32:35,480 OF AUTOPSY AND PLACENTA REVIEW 2310 01:32:35,480 --> 01:32:38,560 MOST COUNTIES AND STATES DON'T 2311 01:32:38,560 --> 01:32:40,640 HAVE TRAINING -- WE NEED THIS 2312 01:32:40,640 --> 01:32:43,360 INFORMATION AND OTHER COUNTRIES 2313 01:32:43,360 --> 01:32:45,000 LOWERED INCIDENCE OF PREVENTABLE 2314 01:32:45,000 --> 01:32:46,600 STILLBIRTH AND YOUR COMMITTEE'S 2315 01:32:46,600 --> 01:32:48,960 WORK IS INSTRUMENTAL IN MAKING A 2316 01:32:48,960 --> 01:32:50,880 DIFFERENCE. NOW TODAY IN THE 2317 01:32:50,880 --> 01:32:52,960 UNITED STATES ANOTHER 65 BABIES 2318 01:32:52,960 --> 01:32:56,000 WILL DIE. DON'T LET THAT HAPPEN 2319 01:32:56,000 --> 01:32:58,560 TOMORROW. AND ALL THE 2320 01:32:58,560 --> 01:32:59,640 TOMORROWS. STILLBIRTH IS A 2321 01:32:59,640 --> 01:33:03,520 SILENT EPIDEMIC AND WELL PAST 2322 01:33:03,520 --> 01:33:05,920 TIME THIS BE ADDRESSED. IN A 2323 01:33:05,920 --> 01:33:12,080 FEW WEEKS WE WILL HONOR MEMORY 2324 01:33:12,080 --> 01:33:15,560 OF OLIVER'S 10TH BIRTHDAY WITH 2325 01:33:15,560 --> 01:33:18,280 AA CAKE BUT NOT OLIVER. THIS 2326 01:33:18,280 --> 01:33:19,360 GRANDMOTHER AND THIS GRANDFATHER 2327 01:33:19,360 --> 01:33:21,200 WOULD LIKE TO THANK YOU AND LOOK 2328 01:33:21,200 --> 01:33:23,960 FORWARD TO HEARING ABOUT NICHD'S 2329 01:33:23,960 --> 01:33:27,200 ACTIONS TO LOWIN KRIDENCE OF 2330 01:33:27,200 --> 01:33:27,840 PREVENTABLE STILLBIRTH. 2331 01:33:27,840 --> 01:33:31,360 >> THANK YOU SO MUCH. THANK YOU 2332 01:33:31,360 --> 01:33:33,240 SO MUCH FOR YOUR REPRESENTATION 2333 01:33:33,240 --> 01:33:35,120 NOT ONLY OF YOUR DAUGHTER AND 2334 01:33:35,120 --> 01:33:40,760 SON IN LAW BUT OF YOUR FAMILY. 2335 01:33:40,760 --> 01:33:44,960 IF WE CAN, I BELIEVE THE NEXT 2336 01:33:44,960 --> 01:33:49,600 SPEAKER IS SEAN SUMILAS. 2337 01:33:49,600 --> 01:33:56,120 HOPEFULLY I GOT IT SEMIRIGHT. 2338 01:33:56,120 --> 01:33:56,560 >> 2339 01:33:56,560 --> 01:33:59,040 >> YES. GOOD JOB. 2340 01:33:59,040 --> 01:34:02,080 >> PLEASE GO AHEAD. 2341 01:34:02,080 --> 01:34:03,520 >> THANK YOU. 2342 01:34:03,520 --> 01:34:06,840 TWO DAYS BEFORE MY SON DIED I 2343 01:34:06,840 --> 01:34:08,600 NOTICED A DECREASE IN HIS 2344 01:34:08,600 --> 01:34:10,920 MOVEMENTS TOLD BY MY PROVIDE ERR 2345 01:34:10,920 --> 01:34:13,320 HE WAS SETTLING DOWN FOR BIRTH. 2346 01:34:13,320 --> 01:34:14,800 ZACK WAS MY SECOND CHILD. I WAS 2347 01:34:14,800 --> 01:34:17,120 NEVER EDUCATED IN EITHER 2348 01:34:17,120 --> 01:34:18,280 PREGNANCY ABOUT IMPORTANCE OF 2349 01:34:18,280 --> 01:34:20,880 TRACKING MY BABY'S MOVEMENTS. 2350 01:34:20,880 --> 01:34:23,640 EXPERIENCES LED ME TO BE ARIZONA 2351 01:34:23,640 --> 01:34:26,800 AMBASSADOR FOR COUNT THE KICKS 2352 01:34:26,800 --> 01:34:29,120 SINCE 2013. THIS PAST YEAR 2353 01:34:29,120 --> 01:34:30,800 PARTNERED WITH ARIZONA 2354 01:34:30,800 --> 01:34:33,560 DEPARTMENT OF HEALTH. I'M A 2355 01:34:33,560 --> 01:34:35,840 COMPLEXITY SCIENTIST AND MEMBER 2356 01:34:35,840 --> 01:34:41,720 OF MATERNAL CHILD HEALTH 2357 01:34:41,720 --> 01:34:42,920 TRANCINGLATIONAL TEAM -- TO 2358 01:34:42,920 --> 01:34:44,920 WRITE THE FETAL INFANT MORTALITY 2359 01:34:44,920 --> 01:34:47,400 ACTION PLAN FOR THE STATE OF 2360 01:34:47,400 --> 01:34:47,720 ARIZONA. 2361 01:34:47,720 --> 01:34:49,680 THESE RULES HELP ME HAVE A 2362 01:34:49,680 --> 01:34:51,200 DEEPER UNDERSTANDING OF DIRE 2363 01:34:51,200 --> 01:34:53,840 STATE OF STILLBIRTH AND MATERNAL 2364 01:34:53,840 --> 01:34:57,080 DEATH IN OUR COUNTRY. DEEPLY 2365 01:34:57,080 --> 01:34:59,120 TROUBLING TO SEE 12 YEARS AFTER 2366 01:34:59,120 --> 01:35:01,800 LOSING MY SON THINGS HAVE NOT 2367 01:35:01,800 --> 01:35:06,440 GOTTEN BETTER. IN ONE PANDEMIC 2368 01:35:06,440 --> 01:35:08,080 LATER EMERGING EVIDENCE IS 2369 01:35:08,080 --> 01:35:09,880 SHOWING THINGS HAVE GOTTEN WORSE 2370 01:35:09,880 --> 01:35:11,440 ESPECIALLY FOR WOMEN OF COLOR. 2371 01:35:11,440 --> 01:35:13,440 MOMS AND BABIES CONTINUE TO DIE 2372 01:35:13,440 --> 01:35:18,040 AT ALARMING RATES. THIS IS 2373 01:35:18,040 --> 01:35:19,800 EMOTIONAL. I INCLUDE MOMS. WE 2374 01:35:19,800 --> 01:35:21,840 KNOW STILLBIRTH COMES WITH 2375 01:35:21,840 --> 01:35:24,120 INCREASED RISK OF MATERNAL 2376 01:35:24,120 --> 01:35:25,960 MORTALITY AND MORBIDITY. I 2377 01:35:25,960 --> 01:35:28,960 ATTEST TO THIS FIRSTHAND I WAS 2378 01:35:28,960 --> 01:35:31,800 CONSIDERED A NEAR MISS. LOST 3 2379 01:35:31,800 --> 01:35:34,800 TIMES MY BLOOD VOLUME GOING INTO 2380 01:35:34,800 --> 01:35:37,720 DIC. FAMILY TOLD I HAD LESS 2381 01:35:37,720 --> 01:35:40,600 THAN 20% CHANCE OF SURVIVAL. I 2382 01:35:40,600 --> 01:35:42,840 FACE SIGNIFICANT LIFE LONG 2383 01:35:42,840 --> 01:35:47,280 HEALTH ISSUES 20 YEARS LATER. 2384 01:35:47,280 --> 01:35:50,480 MY BMI WAS NORMAL. I HAVE NEVER 2385 01:35:50,480 --> 01:35:53,320 SMOKED. I'M NOT A DRUG USER. I 2386 01:35:53,320 --> 01:35:55,720 DID YOGA. HAD OPTIMAL NUTRITION 2387 01:35:55,720 --> 01:35:58,240 AND TOOK CARE OF MYSELF. AS 2388 01:35:58,240 --> 01:36:00,120 LIKE MANY OTHER STILLBIRTH 2389 01:36:00,120 --> 01:36:02,120 FAMILIES I KNOW I DIDN'T FIT 2390 01:36:02,120 --> 01:36:05,040 HEALTH MARKERS LISTED BY NIH AS 2391 01:36:05,040 --> 01:36:08,000 LEADING TO STILLBIRTH CAUSES. 2392 01:36:08,000 --> 01:36:09,240 CONSEQUENTLY FACTS ARE CLEAR. 2393 01:36:09,240 --> 01:36:11,640 DATA RESEARCH AND STILLBIRTH 2394 01:36:11,640 --> 01:36:12,640 INITIATIVES OTHER THAN COUNT THE 2395 01:36:12,640 --> 01:36:15,680 KICKS HAVE BEEN STALLED IN OUR 2396 01:36:15,680 --> 01:36:18,640 COUNTRY FOR OVER A DECADE 2397 01:36:18,640 --> 01:36:19,880 RELYING ON INSUFFICIENT AND 2398 01:36:19,880 --> 01:36:22,640 OUTDATED DATA IS COSTING LIVES. 2399 01:36:22,640 --> 01:36:24,520 AS A STILLBIRTH MOM AND 2400 01:36:24,520 --> 01:36:27,280 SCIENTIST I'M URGING NIH TO HELP 2401 01:36:27,280 --> 01:36:29,120 PROTECT ALL OUR CHILDREN AND 2402 01:36:29,120 --> 01:36:30,160 FUTURE GENERATIONS BY FOCUSING 2403 01:36:30,160 --> 01:36:33,680 ON FOLLOWING IN 2023. 2404 01:36:33,680 --> 01:36:35,560 ASSIST WITH IMPLEMENTING A 2405 01:36:35,560 --> 01:36:37,800 NATIONAL STILLBIRTH DATA 2406 01:36:37,800 --> 01:36:40,120 COLLECTION SYSTEM. COUNTRIES 2407 01:36:40,120 --> 01:36:41,640 LIKE AUSTRALIA HAVE DONE THIS 2408 01:36:41,640 --> 01:36:43,440 SEEING A REDUCTION IN 2409 01:36:43,440 --> 01:36:45,760 STILLBIRTH. INITIATE STUDY ON 2410 01:36:45,760 --> 01:36:48,200 EFFICACY ON COUNT THE KICKS BABY 2411 01:36:48,200 --> 01:36:52,080 SAFE STORIES THAT 2412 01:36:52,080 --> 01:36:53,760 [INDISCERNIBLE] SPEAK FOR 2413 01:36:53,760 --> 01:36:58,120 THEMSELVES INITIATE QUALITATIVE 2414 01:36:58,120 --> 01:37:00,120 STUDIES. LIVED EXPERIENCES WILL 2415 01:37:00,120 --> 01:37:02,040 IDENTIFY ADDITIONAL HEALTH 2416 01:37:02,040 --> 01:37:03,520 MARKERS FOR STILLBIRTH PAVING 2417 01:37:03,520 --> 01:37:05,560 WAY FOR IMPLEMENTATION OF 2418 01:37:05,560 --> 01:37:07,800 EFFECTIVE STILLBIRTH PREVENTION 2419 01:37:07,800 --> 01:37:08,680 INITIATIVES. 2420 01:37:08,680 --> 01:37:10,160 FINALLY, HOPE IS NARRATIVE 2421 01:37:10,160 --> 01:37:13,080 AROUND STILLBIRTH IS STARTING TO 2422 01:37:13,080 --> 01:37:15,480 CHANGE. A KEY PIECE TO MAKING 2423 01:37:15,480 --> 01:37:17,200 THIS HAPPEN SUCCESSFULLY IS FOR 2424 01:37:17,200 --> 01:37:19,840 RESEARCHERS AND SCIENTISTS TO 2425 01:37:19,840 --> 01:37:21,440 TRULY LISTEN TO STILLBIRTH 2426 01:37:21,440 --> 01:37:23,000 FAMILIES. NOW THAT WE KNOW 2427 01:37:23,000 --> 01:37:25,560 BETTER WE MUST DO BETTER. I 2428 01:37:25,560 --> 01:37:27,680 APPRECIATE YOUR TIME TODAY. 2429 01:37:27,680 --> 01:37:32,120 >> THANK YOU SHAWN AND FOR YOUR 2430 01:37:32,120 --> 01:37:35,400 COMMENTS AND RECOMMENDATIONS. 2431 01:37:35,400 --> 01:37:38,560 WITH THAT MOVING TO NEXT SPEAKER 2432 01:37:38,560 --> 01:37:41,720 ALICE ABEND. HOPE I SAID IT 2433 01:37:41,720 --> 01:37:43,720 RIGHT. THANK YOU. ALEX, PLEASE 2434 01:37:43,720 --> 01:37:44,560 GO AHEAD. 2435 01:37:44,560 --> 01:37:47,960 >> THANK YOU. I'M ALEX AND 2436 01:37:47,960 --> 01:37:52,840 MOTHER OF JAMES ROBERT WHO IS A 2437 01:37:52,840 --> 01:37:56,680 STILLBORN BABY BOY THAT SHOULD 2438 01:37:56,680 --> 01:37:59,840 TURN 1 NEXT WEEK. WEPT IN FOR 2439 01:37:59,840 --> 01:38:02,040 RETURN OB VISIT GESTATIONAL 2440 01:38:02,040 --> 01:38:03,760 HYPERTENSION AND BECAUSE OF THAT 2441 01:38:03,760 --> 01:38:08,440 GETTING ROUTINE BIOPHYSICAL 2442 01:38:08,440 --> 01:38:12,160 PROFILES JAMES HAD ONE DONE AND 2443 01:38:12,160 --> 01:38:14,800 PASSED AND ONE IN FEW IN 2444 01:38:14,800 --> 01:38:17,160 PRACTICE WHO CHECKS CHECK AND 2445 01:38:17,160 --> 01:38:19,600 DOES DOPPLAR AFTER ULTRASOUND 2446 01:38:19,600 --> 01:38:24,440 TURNS OUT NORMAL DID DOPPLAR -- 2447 01:38:24,440 --> 01:38:27,040 THEY DID SECOND ULTRA SOUND AND 2448 01:38:27,040 --> 01:38:29,040 HEART BEAT DOWN TO 90 AND DOCTOR 2449 01:38:29,040 --> 01:38:31,920 TOLD US TO GO TO LABOR AND 2450 01:38:31,920 --> 01:38:33,120 DELIVERY IN HOSPITAL. 2451 01:38:33,120 --> 01:38:35,400 GETTING CONGRATULATIONS FROM 2452 01:38:35,400 --> 01:38:36,680 RECEPTIONIST WAITING TO BE 2453 01:38:36,680 --> 01:38:38,200 HOOKED UP TO MONITOR TALKING 2454 01:38:38,200 --> 01:38:40,360 ABOUT INSURANCE WE FIN WILL I 2455 01:38:40,360 --> 01:38:42,600 GOT ANOTHER ULTRA SOUND AND THIS 2456 01:38:42,600 --> 01:38:44,720 TIME TOLD SON HAD NO HEARTBEAT 2457 01:38:44,720 --> 01:38:47,360 WHOLE EXPERIENCE FROM INITIAL OB 2458 01:38:47,360 --> 01:38:51,600 VISIT TO HEARING SON DIED IN MY 2459 01:38:51,600 --> 01:38:53,680 WOMB LASTED UNDER TWO HOURS 2460 01:38:53,680 --> 01:38:59,440 DELIVERED HIM 9 HOURS LATER VIA 2461 01:38:59,440 --> 01:39:01,440 C-SECTION. DOCTOR HUME ANL 2462 01:39:01,440 --> 01:39:04,200 ENOUGH TO KNOW I WOULD BE AT 2463 01:39:04,200 --> 01:39:08,080 RISK OF -- LANDED IN SAME 2464 01:39:08,080 --> 01:39:12,920 HOSPITAL ROOM DUE TO -- IT 2465 01:39:12,920 --> 01:39:14,920 WASN'T UNTIL THE 6 MONTH 2466 01:39:14,920 --> 01:39:16,640 ANNIVERSARY OF DEATH THROUGH 2467 01:39:16,640 --> 01:39:18,560 ORGANIZATIONS SUCH AS PUSH AND 2468 01:39:18,560 --> 01:39:19,760 RAINBOW CLINIC FIRST IN THE 2469 01:39:19,760 --> 01:39:20,960 UNITED STATES THAT WE WERE ABLE 2470 01:39:20,960 --> 01:39:24,400 TO GET ANSWERS JAMES DIED OF 2471 01:39:24,400 --> 01:39:27,000 CORD ACCIDENT COMBINATION OF 2472 01:39:27,000 --> 01:39:28,120 MARGINAL INSERTION SOMETHING I 2473 01:39:28,120 --> 01:39:30,720 DIDN'T KNOW HE HAD AT 20 WEEK 2474 01:39:30,720 --> 01:39:34,360 ANATOMY SCAN. WE ARE NOW TODAY 2475 01:39:34,360 --> 01:39:38,440 JANUARY FIFTH 2023 JUST 6 DAYS 2476 01:39:38,440 --> 01:39:40,600 FROM JAIM'S 1 YEAR ANNIVERSARY. 2477 01:39:40,600 --> 01:39:43,880 I'M 19 WEEKS PREGNANT WITH OUR 2478 01:39:43,880 --> 01:39:45,520 SECOND CHILD AFTERMATH OF 2479 01:39:45,520 --> 01:39:47,560 STILLBIRTH IS LIFE CHATTERING 2480 01:39:47,560 --> 01:39:49,680 I'M SPECIAL EDUCATION ATTORNEY 2481 01:39:49,680 --> 01:39:51,280 AND ALL CLIENTS ARE CHILDREN 2482 01:39:51,280 --> 01:39:54,080 TRIGGER IN AND OF ITSELF 2483 01:39:54,080 --> 01:39:55,800 APPROACHING JANUARY 11TH 2484 01:39:55,800 --> 01:39:57,560 PREGNANT AGAIN FLASHBACKS 2485 01:39:57,560 --> 01:40:00,560 NIGHTMARES SYMPTOMS OF PTSD 2486 01:40:00,560 --> 01:40:02,760 PREGNANT AND GRIEVING HONORING 2487 01:40:02,760 --> 01:40:05,240 DEAD SON GROWING A HOPEFULLY 2488 01:40:05,240 --> 01:40:08,040 ALIVE BABY GIRL ALL AT SAME 2489 01:40:08,040 --> 01:40:09,720 TIME. SOME THINGS JUST HAPPEN. 2490 01:40:09,720 --> 01:40:11,480 SPEAKING TODAY NOT BECAUSE I 2491 01:40:11,480 --> 01:40:13,160 THINK JAIM'S DEATH NECESSARILY 2492 01:40:13,160 --> 01:40:15,040 COULD HAVE BEEN PREVENTED HE 2493 01:40:15,040 --> 01:40:18,360 DIED IN FRONT OF MEDICAL 2494 01:40:18,360 --> 01:40:20,680 PROFESSIONALS IN REAL-TIME BUT 2495 01:40:20,680 --> 01:40:22,760 UNACCEPTABLE TO ME WOMAN LIVING 2496 01:40:22,760 --> 01:40:23,840 IN UNITED STATES -- AND ANY 2497 01:40:23,840 --> 01:40:25,800 OTHER AREA OF SCIENCE WHEN WE 2498 01:40:25,800 --> 01:40:26,960 FIND SOMETHING WE DON'T KNOW AND 2499 01:40:26,960 --> 01:40:28,680 CAN'T UNDERSTAND WE DON'T LEAVE 2500 01:40:28,680 --> 01:40:30,400 IT BE BUT ASK OURSELVES WHY DOES 2501 01:40:30,400 --> 01:40:32,560 IT HAPPEN AND HOW DOES IT HAPPEN 2502 01:40:32,560 --> 01:40:34,560 BUT FOR SOME REASON STILLBIRTHS 2503 01:40:34,560 --> 01:40:39,120 DON'T GET THAT ESPECIALLY THOSE 2504 01:40:39,120 --> 01:40:41,200 WITH CORD ACCIDENTS. IN THIS 2505 01:40:41,200 --> 01:40:43,760 COUNTRY IT IS UNACCEPTABLE TO ME 2506 01:40:43,760 --> 01:40:46,480 WE DON'T UTILIZE TOOLS AVAILABLE 2507 01:40:46,480 --> 01:40:49,240 TO US AS 21ST CENTURY FOR EVERY 2508 01:40:49,240 --> 01:40:50,920 PREGNANCY WE CAN TRAVEL TO OUTER 2509 01:40:50,920 --> 01:40:53,080 SPACE AND MAKE PEOPLE CANCER 2510 01:40:53,080 --> 01:40:55,120 FREE DRIVING ELECTRIC CARS WHY 2511 01:40:55,120 --> 01:40:57,640 CAN'T WE FIND OUT WHY 2512 01:40:57,640 --> 01:40:58,920 STILLBIRTHS HAPPEN AND CORD 2513 01:40:58,920 --> 01:41:01,560 ACCIDENTS HAPPEN WHEN PLACENTAS 2514 01:41:01,560 --> 01:41:03,880 ARE SMALL AND HOW TO FIX IT THIS 2515 01:41:03,880 --> 01:41:07,160 GROUP HAS TO INCREASE RESEARCH 2516 01:41:07,160 --> 01:41:09,040 AROUND STILLBIRTH AND STANDARD 2517 01:41:09,040 --> 01:41:10,720 OF CARE AROUND ALL PREGNANCIES 2518 01:41:10,720 --> 01:41:13,400 AND PREGNANCY OUTCOMES THANK 2519 01:41:13,400 --> 01:41:13,600 YOU. 2520 01:41:13,600 --> 01:41:16,040 >> ALEX, THANK YOU. WE SHARE 2521 01:41:16,040 --> 01:41:17,920 YOUR SENTIMENT TOO OWE FRN THAT 2522 01:41:17,920 --> 01:41:20,280 WOMEN'S HEALTH ISSUES ESPECIALLY 2523 01:41:20,280 --> 01:41:23,920 MATERNAL HEALTH AND INFANT 2524 01:41:23,920 --> 01:41:25,280 OUTCOMES ARE VERY MUCH 2525 01:41:25,280 --> 01:41:26,880 UNDERSTUDIED. WE DO WHAT WE 2526 01:41:26,880 --> 01:41:28,880 CAN. WE VERY MUCH APPRECIATE 2527 01:41:28,880 --> 01:41:34,080 THAT SENTIMENT AS WELL. 2528 01:41:34,080 --> 01:41:36,360 I WILL NOW INVITE ANNE FROM 2529 01:41:36,360 --> 01:41:41,120 MEASURE THE PLACENTA AS AN 2530 01:41:41,120 --> 01:41:48,840 ORGANIZATION TO SPEAK. 2531 01:41:48,840 --> 01:41:51,080 I MAY POP UP. I WILL TRY AND 2532 01:41:51,080 --> 01:41:54,040 GIVE YOU A SIGNAL AS WELL. 2533 01:41:54,040 --> 01:41:55,880 >> THANK YOU SO MUCH FOR HOLDING 2534 01:41:55,880 --> 01:41:57,120 THIS MEETING. I APPRECIATE 2535 01:41:57,120 --> 01:41:59,280 THIS. I CANNOT SEE THE SLIDES. 2536 01:41:59,280 --> 01:42:00,600 CAN ANYBODY ELSE? 2537 01:42:00,600 --> 01:42:03,280 THERE WE GO. 2538 01:42:03,280 --> 01:42:06,240 MY NAME IS DR. ANNE O'NEIL AND 2539 01:42:06,240 --> 01:42:07,600 I'M DIRECTOR OF MEASURE THE 2540 01:42:07,600 --> 01:42:09,960 PLACENTA AND WE HAVE A GOAL TO 2541 01:42:09,960 --> 01:42:13,000 SEE PLACENTA SIZE MEASURE 2542 01:42:13,000 --> 01:42:14,840 PREGNANCY RISK FACTOR PER 2543 01:42:14,840 --> 01:42:25,400 OUTCOMES AND NEXT SLIDE THERE. 2544 01:42:32,920 --> 01:42:35,120 PR 2545 01:42:35,120 --> 01:42:37,360 -- ON DUE DATE BACK IN 2018 2546 01:42:37,360 --> 01:42:40,480 VERY HEALTHY PREGNANCY AND HAD 2547 01:42:40,480 --> 01:42:42,800 NO KNOWN RISK FACTORS AND SEEING 2548 01:42:42,800 --> 01:42:46,320 PICTURE ON LEFT THIS IS PART OF 2549 01:42:46,320 --> 01:42:50,160 HIS FUNERAL PROGRAM. -- THIS IS 2550 01:42:50,160 --> 01:42:52,080 WHAT WE CAME UP WITH FOR COVER 2551 01:42:52,080 --> 01:42:54,040 OF HIS PROGRAM. 2552 01:42:54,040 --> 01:42:58,160 WE HELD HIM AFTER HE WAS BORN 2553 01:42:58,160 --> 01:43:00,480 AND CREMATED HIM AND ASKED A 2554 01:43:00,480 --> 01:43:01,720 MILLION QUESTIONS AND 2555 01:43:01,720 --> 01:43:03,280 PATHOLOGIST THREE MONTHS AFTER 2556 01:43:03,280 --> 01:43:05,080 HIS DEATH SAID I DON'T KNOW WHY 2557 01:43:05,080 --> 01:43:08,000 YOUR SON DIED. ONE THING THEY 2558 01:43:08,000 --> 01:43:10,120 IGNORED COMPLETELY NEXT SLIDE, 2559 01:43:10,120 --> 01:43:10,360 PLEASE. 2560 01:43:10,360 --> 01:43:13,120 IT WAS HIS PLACENTA. ELIJAH WAS 2561 01:43:13,120 --> 01:43:20,160 A BIG BABY A LITTLE OVER 80TH 2562 01:43:20,160 --> 01:43:22,160 PERCENTILE. THIS IS ALMOST 2563 01:43:22,160 --> 01:43:23,640 COMPLETELY IGNORED FINAL CAUSE 2564 01:43:23,640 --> 01:43:27,480 OF DEATH IN INITIAL PATHOLOGY 2565 01:43:27,480 --> 01:43:31,720 REPORT WAS CAUSE OF DEATH 2566 01:43:31,720 --> 01:43:32,000 UNKNOWN. 2567 01:43:32,000 --> 01:43:33,200 PHD IN ENVIRONMENTAL SCIENCE 2568 01:43:33,200 --> 01:43:35,160 WHEN I HAVE QUESTIONS LIKE THIS 2569 01:43:35,160 --> 01:43:37,720 I WILL GO TO THE RESEARCH. NEXT 2570 01:43:37,720 --> 01:43:38,560 SLIDE, PLEASE. 2571 01:43:38,560 --> 01:43:40,920 COMBING THROUGH RESEARCH WAS 2572 01:43:40,920 --> 01:43:43,160 DEVASTATING CONFUSING MAKING ME 2573 01:43:43,160 --> 01:43:45,400 FEEL LIKE A CRAZY PERSON. 2574 01:43:45,400 --> 01:43:49,160 GRAPHS LIKE THIS HERE PAPER 2012 2575 01:43:49,160 --> 01:43:52,120 MANY YEARS BEFORE ELIJAH'S 2576 01:43:52,120 --> 01:43:55,480 STILLBIRTH SHOWING PLACENTA ON X 2577 01:43:55,480 --> 01:43:57,280 AXIS PROBABILITY OF STILLBIRTH 2578 01:43:57,280 --> 01:44:00,080 YOU CAN SEE CLEARLY PLACENTA IS 2579 01:44:00,080 --> 01:44:00,800 SMALLER PROBABILITY OF 2580 01:44:00,800 --> 01:44:03,120 STILLBIRTH INCREASES NOTING 2581 01:44:03,120 --> 01:44:06,360 GRAPH GOES DOWN TO Z SCORE OF 2582 01:44:06,360 --> 01:44:08,880 NEGATIVE 2 AND FAMILIES WE 2583 01:44:08,880 --> 01:44:11,120 CONNECTED WITH HAVE SCORES MUCH 2584 01:44:11,120 --> 01:44:14,040 SMALLER THAN NEGATIVE 2 AND THIS 2585 01:44:14,040 --> 01:44:16,040 STUDY FOUND THAT PLACENTA SIZE 2586 01:44:16,040 --> 01:44:19,120 IS RISK FACTOR INDEPENDENT OF 2587 01:44:19,120 --> 01:44:22,200 BIRTH WEIGHT NOT SUFFICIENT TO 2588 01:44:22,200 --> 01:44:24,160 LOOK AT FETUS TO DETERMINE IF 2589 01:44:24,160 --> 01:44:25,480 PLACENTA IS SMALL THIS FOUND 2590 01:44:25,480 --> 01:44:28,880 THAT ROUGHLY 7 TAEN% OF ALL 2591 01:44:28,880 --> 01:44:32,080 BIRTHS IN STUDY LARGE STUDY 2592 01:44:32,080 --> 01:44:36,080 80,000 BABIES 80% OF THESE 2593 01:44:36,080 --> 01:44:38,640 BIRTHS WERE ATTRIBUTED TO SMALL 2594 01:44:38,640 --> 01:44:39,760 PLACENTA. NEXT SLIDE, PLEASE. 2595 01:44:39,760 --> 01:44:44,120 FIVE MINUTES CAN'T GO THROUGH 2596 01:44:44,120 --> 01:44:54,640 RESEARCH LICHG IING. 2597 01:44:58,000 --> 01:45:01,760 IMAGINE ME AS A LOST MOM I HAVE 2598 01:45:01,760 --> 01:45:11,960 BEEN TOLD. 2599 01:45:23,200 --> 01:45:23,880 THIS IS SOMETHING THAT ALL OF 2600 01:45:23,880 --> 01:45:26,040 THE PAPERS HAVE IN COMMON THEY 2601 01:45:26,040 --> 01:45:28,760 SAY IF WE COULD MEASURE PLACENTA 2602 01:45:28,760 --> 01:45:33,840 SIZE DURING PREGNANCY WE COULD 2603 01:45:33,840 --> 01:45:35,920 AVERT LOW RISK PREGNANCY 2604 01:45:35,920 --> 01:45:38,200 STILLBIRTHS THAT HAPPEN. NEXT 2605 01:45:38,200 --> 01:45:39,400 SLIDE, PLEASE. 2606 01:45:39,400 --> 01:45:43,720 WE HAVE CONNECTED WITH DR. 2607 01:45:43,720 --> 01:45:46,080 HARVEY AT [INDISCERNIBLE] 2608 01:45:46,080 --> 01:45:47,120 ELIJAH'S STILLBIRTH HE AND HIS 2609 01:45:47,120 --> 01:45:50,400 FATHER COLLABORATED TO COME UP 2610 01:45:50,400 --> 01:45:52,320 WITH SIMPLE MEASUREMENT PLACENTA 2611 01:45:52,320 --> 01:45:55,520 VOLUME THREE MEASUREMENTS FREE 2612 01:45:55,520 --> 01:46:00,120 REQUIRING STANDARD ULTRASOUND 2613 01:46:00,120 --> 01:46:03,040 NOT FANCY REQUIRING TECHNOLOGY 2614 01:46:03,040 --> 01:46:04,960 NOT MUCH TIME WE SHOULD 2615 01:46:04,960 --> 01:46:07,400 INTEGRATE INTO PRENATAL CARE. 2616 01:46:07,400 --> 01:46:10,640 MANY LOSS FAMILIES WROTE OVER 2617 01:46:10,640 --> 01:46:14,160 5,000 LETTERS TO ACOG IMPLORING 2618 01:46:14,160 --> 01:46:17,120 DEMANDING WE GET PLACENTAS 2619 01:46:17,120 --> 01:46:20,080 MEASURED. ONE THING COMING OF 2620 01:46:20,080 --> 01:46:21,280 THIS NEXT SLIDE, PLEASE. 2621 01:46:21,280 --> 01:46:26,120 IT WAS A MEETING WITH DR. 2622 01:46:26,120 --> 01:46:28,520 CHRISTOPHER ZAHN. HE SAYS WE 2623 01:46:28,520 --> 01:46:32,120 WOULD BE HAPPY TO IMPLEMENT EPV 2624 01:46:32,120 --> 01:46:34,000 ONCE RESEARCH IS THERE SHOWING 2625 01:46:34,000 --> 01:46:35,840 ACCEPTABLE TO IMPLEMENT THIS IN 2626 01:46:35,840 --> 01:46:37,640 LARGE SCALE. YOU HAVE TO GO 2627 01:46:37,640 --> 01:46:40,600 TALK TO THE NHD AND ASK THEM TO 2628 01:46:40,600 --> 01:46:42,560 FUND A LARGE PERSPECTIVE STUDY 2629 01:46:42,560 --> 01:46:45,640 ON EPV. I'M HERE ON BEHALF OF 2630 01:46:45,640 --> 01:46:50,280 LOSS FAMILIES AND CHRISTOPHER 2631 01:46:50,280 --> 01:46:55,200 ZAHN AT ACOG WHO TOLD ME TO ASK 2632 01:46:55,200 --> 01:46:57,240 YOU THIS. 2633 01:46:57,240 --> 01:46:59,880 I WILL END HERE WITH A GRAPH. 2634 01:46:59,880 --> 01:47:03,080 THIS IS DATA IN THE PUREST CAUSE 2635 01:47:03,080 --> 01:47:04,720 AND EFFECT SENSE OF THE WORD. 2636 01:47:04,720 --> 01:47:08,440 WE SUBMITTED FOR RFI. THESE ARE 2637 01:47:08,440 --> 01:47:10,400 PLACENTA SIZES GESTATIONAL AGE 2638 01:47:10,400 --> 01:47:12,680 AT STILLBIRTH AT FAMILIES WHO 2639 01:47:12,680 --> 01:47:15,960 SIGNED R FCHL I. THESE ARE 2640 01:47:15,960 --> 01:47:17,960 FAMILIES WONDERING IF BABY'S 2641 01:47:17,960 --> 01:47:20,120 PLACENTA IF MEASURED DURING 2642 01:47:20,120 --> 01:47:21,760 PREGNANCY IF THEIR BABY WOULD 2643 01:47:21,760 --> 01:47:23,720 STILL BE HERE. PLEASE I IMPLORE 2644 01:47:23,720 --> 01:47:26,760 YOU TO FUND RESEARCH NEEDING TO 2645 01:47:26,760 --> 01:47:28,400 HAPPEN TO GET RESEARCH ACCOUNTED 2646 01:47:28,400 --> 01:47:30,720 FOR DURING PREGNANCY. THANK YOU 2647 01:47:30,720 --> 01:47:32,080 FOR LISTENING. 2648 01:47:32,080 --> 01:47:35,520 >> THANK YOU, ANNE. RECOGNIZING 2649 01:47:35,520 --> 01:47:39,400 THAT NHCD IS ONLY INSTITUTE 2650 01:47:39,400 --> 01:47:44,000 SYSTEMICALLY MEASURING PLACENTA. 2651 01:47:44,000 --> 01:47:47,840 WE HAVE A FULL INITIATIVE ON IT 2652 01:47:47,840 --> 01:47:50,440 THIS IS ALIGNED WITH OUR WORK 2653 01:47:50,440 --> 01:47:52,760 AND THANKS FOR HIGHLIGHTING IT. 2654 01:47:52,760 --> 01:47:55,040 LAURA DRAKE, IF YOU ARE ON AND 2655 01:47:55,040 --> 01:47:57,040 FOLKS I WANT TO REMIND WE ARE 2656 01:47:57,040 --> 01:47:58,280 GOING BACK INTO INDIVIDUAL 2657 01:47:58,280 --> 01:47:58,880 SESSIONS. 2658 01:47:58,880 --> 01:48:01,240 SO, WE ARE ASKING YOU TO STAY 2659 01:48:01,240 --> 01:48:02,480 WITHIN THREE MINUTES IF POSSIBLE 2660 01:48:02,480 --> 01:48:06,520 AND TRYING TO BE RESPECTFUL OF 2661 01:48:06,520 --> 01:48:08,000 TIMES WE TOLD PEOPLE THEY WOULD 2662 01:48:08,000 --> 01:48:10,080 PRESENT AND HAD ADJUSTMENTS. 2663 01:48:10,080 --> 01:48:11,680 LAURA, ARE YOU AVAILABLE? 2664 01:48:11,680 --> 01:48:13,440 >> I'M HERE. CAN YOU HAD HEAR 2665 01:48:13,440 --> 01:48:15,320 ME? 2666 01:48:15,320 --> 01:48:21,800 >> GO AHEAD. JANUARY FIFTH TWO 2667 01:48:21,800 --> 01:48:25,560 YEARS AGO I HEARD MY DAUGHTER 2668 01:48:25,560 --> 01:48:26,440 HAD NO HEARTBEAT. 2669 01:48:26,440 --> 01:48:29,600 IF FUNDING IS A CONCERN COST OF 2670 01:48:29,600 --> 01:48:32,080 THINGS HAVE BEEN COVERED LIKE 2671 01:48:32,080 --> 01:48:33,720 MENTAL HEALTH HAVE BEEN 2672 01:48:33,720 --> 01:48:40,120 TREMENDOUS I WAS UNDER CARE OF 2673 01:48:40,120 --> 01:48:42,120 FETAL MEDICAL DOCTOR -- THE 2674 01:48:42,120 --> 01:48:43,520 INFORMATION PROVIDED BY HER WAS 2675 01:48:43,520 --> 01:48:45,760 NOT AS ACCURATE AS WONDERFUL 2676 01:48:45,760 --> 01:48:48,000 INFORMATION I KNOW EXISTS 2677 01:48:48,000 --> 01:48:49,840 THROUGH PUSH HARD PREGNANCY AND 2678 01:48:49,840 --> 01:48:52,120 COUNT THE KICKS 10 MOVEMENTS IN 2679 01:48:52,120 --> 01:48:54,640 TWO HOURS I WAS TOLD WOULD BE 2680 01:48:54,640 --> 01:48:55,840 FINEMENT [INDISCERNIBLE] BECAUSE 2681 01:48:55,840 --> 01:48:59,120 OF MY INTERIOR PLACENTA NEVER 2682 01:48:59,120 --> 01:49:02,640 EDUCATED ON FRANTIC MOVEMENT IN 2683 01:49:02,640 --> 01:49:04,880 HINDSIGHT SHE HAD A FEW WEEKS 2684 01:49:04,880 --> 01:49:06,880 PRIOR. DIAGNOSTIC ULTRASOUND TO 2685 01:49:06,880 --> 01:49:09,120 CHECK FOR POTENTIAL CAUSES TO 2686 01:49:09,120 --> 01:49:12,520 PLAN FOR FUTURE PREGNANCIES 2687 01:49:12,520 --> 01:49:15,120 BEFORE SHE DETERIORATED FURTHER. 2688 01:49:15,120 --> 01:49:17,440 I HAPPENED TO PREVIOUSLY ATTEND 2689 01:49:17,440 --> 01:49:20,400 A SUPPORT GROUP FACILITATED BY 2690 01:49:20,400 --> 01:49:22,240 THERAPY WHO WAS A GRIEF DOULA 2691 01:49:22,240 --> 01:49:25,520 WHO I CALLED FROM THE HOSPITAL. 2692 01:49:25,520 --> 01:49:26,920 LOS ANGELES HOSPITAL ACTED LIKE 2693 01:49:26,920 --> 01:49:30,280 IT WAS REALLY UNUSUAL NO 2694 01:49:30,280 --> 01:49:31,200 PROTOCOL CHECKLIST SEEMED TO 2695 01:49:31,200 --> 01:49:33,520 EXIST UP TO MYSELF IN LABOR AND 2696 01:49:33,520 --> 01:49:36,080 HUSBAND TO RESEARCH ADVOCATE AND 2697 01:49:36,080 --> 01:49:38,680 IMPLEMENT TESTING DR. KLEINMAN 2698 01:49:38,680 --> 01:49:41,120 DETERMINED LACK OF DEATH WAS 2699 01:49:41,120 --> 01:49:44,720 FETAL MATERNAL HEMORRHAGE. 2700 01:49:44,720 --> 01:49:48,120 TESTING AND CHROMOSOMAL TESTING 2701 01:49:48,120 --> 01:49:49,160 WAS NORMAL AND PLACENTA SIZE 2702 01:49:49,160 --> 01:49:51,200 RISK FOR BLEEDING MONITORING 2703 01:49:51,200 --> 01:49:53,600 DATA POINT ALONG WITH BETTER 2704 01:49:53,600 --> 01:49:56,080 MOVEMENT EDUCATION IN BIRTH 2705 01:49:56,080 --> 01:49:58,240 COUNTRY OF AUSTRALIA WOULD SHE 2706 01:49:58,240 --> 01:50:00,120 CELEBRATE SEKTD BIRTHDAY THIS 2707 01:50:00,120 --> 01:50:03,600 YEAR INDUCED LABOR FIVE DAYS NOT 2708 01:50:03,600 --> 01:50:06,440 OFFERED C SECTION OR RISKS WITH 2709 01:50:06,440 --> 01:50:09,920 HEMORRHAGE OF PROLONGED LABOR 2710 01:50:09,920 --> 01:50:13,160 PLACENTA DIDN'T DETACH RUSHED 2711 01:50:13,160 --> 01:50:16,000 INTO EMERGENCY SURGERY. I ENDED 2712 01:50:16,000 --> 01:50:18,920 UP WITH SCAR TISSUE RENDERING ME 2713 01:50:18,920 --> 01:50:23,840 UNLIKELY TO CARRY A PREGNANCY 2714 01:50:23,840 --> 01:50:25,280 AGAIN. [INDISCERNIBLE] WHEN I 2715 01:50:25,280 --> 01:50:28,120 FINALLY WOKE UP TIME WITH HER 2716 01:50:28,120 --> 01:50:31,720 WAS EXTREMELY LIMITED. ALSO A 2717 01:50:31,720 --> 01:50:33,400 STANDARD OF CARE HAD TO WEIGH 2718 01:50:33,400 --> 01:50:35,360 PRECIOUS TIME WITH HER AGAINST 2719 01:50:35,360 --> 01:50:37,880 POTENTIAL ACCURACY OF AUTOPSY 2720 01:50:37,880 --> 01:50:40,000 RESULTS. IF WE WANT TO GIVE 2721 01:50:40,000 --> 01:50:42,800 CHANCE OF LIFE USE GESTATIONAL 2722 01:50:42,800 --> 01:50:44,040 CARRIER SELF-FUNDED IF I OR 2723 01:50:44,040 --> 01:50:46,120 SOMEONE IN DEMOGRAPHIC PERCEIVED 2724 01:50:46,120 --> 01:50:48,600 GETTING HIGHEST STANDARD OF CARE 2725 01:50:48,600 --> 01:50:50,080 WENT THROUGH THIS HOW KI 2726 01:50:50,080 --> 01:50:51,720 ADVOCATE FOR SOMEONE CONSIDERED 2727 01:50:51,720 --> 01:50:53,920 LOW RISK OR IN RURAL AREA WITH 2728 01:50:53,920 --> 01:50:56,360 LESS ACCESS WE SHOULD BE DOING 2729 01:50:56,360 --> 01:50:59,360 EVERYTHING TO SAVE BABIES THAT 2730 01:50:59,360 --> 01:51:02,120 COULD BE SAVED IF SAVE ONE IT IS 2731 01:51:02,120 --> 01:51:04,360 WELL WORTH IT. THANKS FOR YOUR 2732 01:51:04,360 --> 01:51:04,560 TIME. 2733 01:51:04,560 --> 01:51:13,680 >> LAURA, THANK YOU SO MUCH. 2734 01:51:13,680 --> 01:51:18,320 >> I WILL INVITE ELENA. P 2735 01:51:18,320 --> 01:51:19,880 E-LENA, ARE YOU WITH US? 2736 01:51:19,880 --> 01:51:22,080 >> I AM. CAN YOU HEAR ME? 2737 01:51:22,080 --> 01:51:23,160 >> I CAN. 2738 01:51:23,160 --> 01:51:27,320 >> GREAT. THANK YOU SO MUCH. 2739 01:51:27,320 --> 01:51:29,840 THANK YOU. I APPRECIATE YOU 2740 01:51:29,840 --> 01:51:31,640 HOSTING THIS TODAY AND FOR 2741 01:51:31,640 --> 01:51:34,400 ALLOWING US TO TELL OUR STORIES. 2742 01:51:34,400 --> 01:51:37,960 MY FIRST SON DYLAN WOULD BE 8 2743 01:51:37,960 --> 01:51:40,080 YEARS OLD. 2744 01:51:40,080 --> 01:51:44,120 HE WAS STILLBORN ON JULY 4TH 2745 01:51:44,120 --> 01:51:47,000 2014. EVERY TIME I TELL HIS 2746 01:51:47,000 --> 01:51:49,960 STORY I CHOKE UP. 33 WEEKS 2747 01:51:49,960 --> 01:51:52,120 GESTATION. AFTER A NORMAL AND 2748 01:51:52,120 --> 01:51:56,120 HEALTHY PREGNANCY AND DIED DUE 2749 01:51:56,120 --> 01:51:58,520 TO PLACENTAL ABRUPGS WITH NO 2750 01:51:58,520 --> 01:52:00,880 KNOWN RISK FACTORS EXTENSIVE 2751 01:52:00,880 --> 01:52:02,280 TESTING AFTER HE DIED COULDN'T 2752 01:52:02,280 --> 01:52:07,320 FIND A CAUSE FOR PLACENTAL 2753 01:52:07,320 --> 01:52:09,160 ABRUPGS. GONE IN DAY BEFORE 2754 01:52:09,160 --> 01:52:12,440 DYLAN DIED I HAD CRAMPING AND 2755 01:52:12,440 --> 01:52:14,320 DISCOMFORT. TWO HOURS OF 2756 01:52:14,320 --> 01:52:16,200 MONITORING I WAS SENT HOME 2757 01:52:16,200 --> 01:52:19,040 DURING MONITORING HAERT RATE WAS 2758 01:52:19,040 --> 01:52:20,400 NORMAL WASN'T HAVING 2759 01:52:20,400 --> 01:52:22,000 CONTRACTIONS DOCTORS THOUGHT I 2760 01:52:22,000 --> 01:52:24,400 HAD UTI. WITHIN 12 HOURS OF US 2761 01:52:24,400 --> 01:52:30,080 BEING AT HOME HE DIED. 2762 01:52:30,080 --> 01:52:34,200 I AM HERE TODAY AND I'M A. 2763 01:52:34,200 --> 01:52:35,520 >> PARTICIPANT: OF PUSH 2764 01:52:35,520 --> 01:52:36,960 PREGNANCY. WE NEED TO DO 2765 01:52:36,960 --> 01:52:39,040 BETTER. WE NEED TO INCREASE 2766 01:52:39,040 --> 01:52:40,080 RESEARCH AND UNDERSTANDING WHY 2767 01:52:40,080 --> 01:52:42,360 THIS HAPPENS AND IN PARTICULAR 2768 01:52:42,360 --> 01:52:44,000 WHEN THERE IS COMPLICATIONS WITH 2769 01:52:44,000 --> 01:52:47,680 THE PLACENTA. 2770 01:52:47,680 --> 01:52:52,040 THANK YOU. 2771 01:52:52,040 --> 01:52:54,960 >> E-LENA, THANK YOU SO MUCH FOR 2772 01:52:54,960 --> 01:52:56,120 BRINGING THAT STORY FORWARD AND 2773 01:52:56,120 --> 01:52:59,400 FOR TALKING ABOUT THE PREVENTIVE 2774 01:52:59,400 --> 01:53:02,000 AND MISSED OPPORTUNITIES. 2775 01:53:02,000 --> 01:53:03,440 WE DO APPRECIATE IT. 2776 01:53:03,440 --> 01:53:06,520 WHAT I WOULD LIKE TO DO, I 2777 01:53:06,520 --> 01:53:07,960 THINK, RACHEL, I SEE YOU. I 2778 01:53:07,960 --> 01:53:11,960 WILL MOVE TO -- I WILL HOPE I 2779 01:53:11,960 --> 01:53:16,280 DIDN'T GET THIS WRONG. 2780 01:53:16,280 --> 01:53:16,560 ONCOVICH. 2781 01:53:16,560 --> 01:53:17,200 >> THAT IS PERFECT. 2782 01:53:17,200 --> 01:53:19,760 >> OKAY. PERFECT, RACHEL. 2783 01:53:19,760 --> 01:53:21,520 MOVING TO YOU AND THANK YOU FOR 2784 01:53:21,520 --> 01:53:24,400 JOINING US TODAY. PLEASE GO 2785 01:53:24,400 --> 01:53:25,080 AHEAD AND BEGIN. 2786 01:53:25,080 --> 01:53:27,880 >> MY DAUGHTER WAS BORN ON A 2787 01:53:27,880 --> 01:53:30,640 WEDNESDAY AT 37.5 WEEKS PREGNANT 2788 01:53:30,640 --> 01:53:35,320 SEPTEMBER 16TH, 2020. SHE WAS 2789 01:53:35,320 --> 01:53:43,920 NAMED AFTER GREAT GRANDMOTHER -- 2790 01:53:43,920 --> 01:53:46,680 THE DOCTOR SLICED OPEN MY 2791 01:53:46,680 --> 01:53:50,360 ABDOMEN AND LIFTED INTO AIR AND 2792 01:53:50,360 --> 01:53:51,400 BODY CARRIED AROUND 2793 01:53:51,400 --> 01:53:52,160 [INDISCERNIBLE]. THERE ARE NO 2794 01:53:52,160 --> 01:53:55,000 WORDS TO DESCRIBE WHAT IT FELT 2795 01:53:55,000 --> 01:53:57,800 LIKE TO SEE HER FACE AND ONLY 2796 01:53:57,800 --> 01:54:01,240 ANALOGIES I CAN COME UP WITH ARE 2797 01:54:01,240 --> 01:54:03,200 RELIGIOUS AND I CAN DESCRIBE 2798 01:54:03,200 --> 01:54:06,720 HER. IT IS INSUFFICIENT. SHE 2799 01:54:06,720 --> 01:54:08,760 HAD BROWN HAIR. SHE HAD BROWN 2800 01:54:08,760 --> 01:54:12,120 HAIR AND WAS 19.5 INCHES LONG 2801 01:54:12,120 --> 01:54:14,720 AND WEIGHED 5 POUNDS AND 15.3 2802 01:54:14,720 --> 01:54:18,160 OUNCES AND IS LOVED BEYOND 2803 01:54:18,160 --> 01:54:20,120 MEASURE. HER SKIN SOFTER THAN 2804 01:54:20,120 --> 01:54:21,600 SILK AND HER HAND SOMEHOW LOOKED 2805 01:54:21,600 --> 01:54:24,720 LIKE MY HAND AND IS ADORED WITH 2806 01:54:24,720 --> 01:54:27,920 EVERY OUNCE OF MY BLOOD AND HAD 2807 01:54:27,920 --> 01:54:32,240 A SWEET CLEFT CHIN A DOMINANT 2808 01:54:32,240 --> 01:54:33,640 TRAIT FROM MY IMMEDIATE FAMILY 2809 01:54:33,640 --> 01:54:37,640 SHE WAS CREMATED COPIES OF 2810 01:54:37,640 --> 01:54:40,680 FOOTPRINTS BUT NOT HANDPRINTS 2811 01:54:40,680 --> 01:54:43,080 SHE DIED ON WAY TO NEW MOON. I 2812 01:54:43,080 --> 01:54:45,400 PAID A LOT OF MONEY OUT OF 2813 01:54:45,400 --> 01:54:47,120 POCKET TO LEARN THAT. 2814 01:54:47,120 --> 01:54:49,520 SHE WAS AUTOPSIED BUT I WAS TOLD 2815 01:54:49,520 --> 01:54:53,760 THAT THERE WAS NO CAUSE. 2816 01:54:53,760 --> 01:54:57,320 I HAD TOLD OUR DOCTOR'S PRACTICE 2817 01:54:57,320 --> 01:54:58,560 HER MOVEMENT CHANGED THREE WEEKS 2818 01:54:58,560 --> 01:55:01,280 AND 2 WEEKS BEFORE SHE DIED. 2819 01:55:01,280 --> 01:55:03,400 EACH TIME THEY SHRUGGED AND TOLD 2820 01:55:03,400 --> 01:55:05,880 ME THAT HAPPENED WHEN BABIES 2821 01:55:05,880 --> 01:55:07,520 PREPARE FOR BIRTH. TOO TRUSTING 2822 01:55:07,520 --> 01:55:09,440 OF THE MEDICAL SYSTEM TO KNOW 2823 01:55:09,440 --> 01:55:12,160 THEN WHAT I SHOULD HAVE -- WHAT 2824 01:55:12,160 --> 01:55:14,960 I KNOW NOW THAT IS 2825 01:55:14,960 --> 01:55:17,080 [INDISCERNIBLE] MY FULL MOON 2826 01:55:17,080 --> 01:55:19,160 BRIGHTEST LIGHT OF THE DARKEST 2827 01:55:19,160 --> 01:55:20,360 HOUR I WILL NEVER KNOW THE COLOR 2828 01:55:20,360 --> 01:55:23,160 OF HER EYES AND HAD TO TELL MY 2829 01:55:23,160 --> 01:55:25,160 MOTHER HER GRANDDAUGHTER WAS 2830 01:55:25,160 --> 01:55:27,040 DEAD AND MOTHER TOLD MY FATHER. 2831 01:55:27,040 --> 01:55:29,160 I DON'T BLAME THE INDIVIDUAL 2832 01:55:29,160 --> 01:55:31,920 DOCTORS THAT SAW US DURING 2833 01:55:31,920 --> 01:55:33,600 PREGNANCY AND DON'T DISLIKE THEM 2834 01:55:33,600 --> 01:55:36,120 PARTICULARLY BUT BLAME LACK OF 2835 01:55:36,120 --> 01:55:38,360 FUNDING, RESEARCH, STOP GAP 2836 01:55:38,360 --> 01:55:39,960 MEASURES IN THE MEANTIME AND 2837 01:55:39,960 --> 01:55:41,960 BLAME BROKEN SYSTEM TRAINING 2838 01:55:41,960 --> 01:55:43,040 DOCTORS WITH INCORRECT 2839 01:55:43,040 --> 01:55:44,360 INFORMATION AND POLICIES THEY 2840 01:55:44,360 --> 01:55:47,920 ARE TAUGHT TO FOLLOW AND BLAME 2841 01:55:47,920 --> 01:55:48,800 SYSTEM THAT [INDISCERNIBLE] 2842 01:55:48,800 --> 01:55:50,960 QUANTITY OF PATIENTS RATHER THAN 2843 01:55:50,960 --> 01:55:53,160 QUALITY OF CLAIRE SUMMER SALTED 2844 01:55:53,160 --> 01:55:56,600 TO END BREACH TO BIRTHING 2845 01:55:56,600 --> 01:55:59,160 POSITION I WAS AT RISK AND 2846 01:55:59,160 --> 01:56:01,520 MEDICAL PROFESSIONAL TOLD ME IT 2847 01:56:01,520 --> 01:56:04,200 WAS CUTE AND DID AGAIN BETWEEN 2848 01:56:04,200 --> 01:56:06,320 DEATH AND BIRTH HENCE C SECTION 2849 01:56:06,320 --> 01:56:09,280 BREACHED DEAD BABIES COULD BE 2850 01:56:09,280 --> 01:56:11,840 BEHEADED IF BIRTHED VAGINALLY. 2851 01:56:11,840 --> 01:56:13,640 C SECTION NEVER HEALED CORRECTLY 2852 01:56:13,640 --> 01:56:15,880 I WAS IN LABOR YOOR WHEN I GOT 2853 01:56:15,880 --> 01:56:20,120 IT 1 YEAR LATER HAD TO HAVE 2854 01:56:20,120 --> 01:56:21,280 CORRECTIVE LAPAROSCOPIC SURGERY 2855 01:56:21,280 --> 01:56:24,640 TO RESTORE FERTILITY I'M 27 2856 01:56:24,640 --> 01:56:28,120 WEEKS PREGNANT AND SCARED WHEN 2857 01:56:28,120 --> 01:56:31,800 HE IS MOVING AND SCARED WHEN HE 2858 01:56:31,800 --> 01:56:35,600 MOVES HE WILL COMPRESS HIS CORD. 2859 01:56:35,600 --> 01:56:36,840 I COULD FEEL HER SELF THROUGH MY 2860 01:56:36,840 --> 01:56:39,560 SKIN AND COULD CRADLE MY HANDS 2861 01:56:39,560 --> 01:56:40,160 AROUND HER HEAD SOMETHING I 2862 01:56:40,160 --> 01:56:42,840 NEVER GOT TO DO WITH HER OUTSIDE 2863 01:56:42,840 --> 01:56:46,440 OF MY BODY AND HER MEMORY IS MY 2864 01:56:46,440 --> 01:56:47,880 GREATEST BLESSING BUT SHE 2865 01:56:47,880 --> 01:56:50,240 DESERVED TO LIVE A LONG LIFE. 2866 01:56:50,240 --> 01:56:51,040 THANK YOU. 2867 01:56:51,040 --> 01:56:55,080 >> THANK YOU, RACHEL. 2868 01:56:55,080 --> 01:56:56,560 >> THANK YOU FOR POINTING OUT 2869 01:56:56,560 --> 01:56:58,840 SOME OF THE SYSTEMIC PIECES OF 2870 01:56:58,840 --> 01:57:00,920 THIS I THINK WE CAN HIGHLIGHT 2871 01:57:00,920 --> 01:57:03,440 AND THINK WE ALSO HEARD. 2872 01:57:03,440 --> 01:57:13,880 I WILL TURN NOW TO MARNEY 2873 01:57:17,840 --> 01:57:20,240 SMIDGE. ARE YOU HERE? SCOMBL 2874 01:57:20,240 --> 01:57:21,040 YES. 2875 01:57:21,040 --> 01:57:23,320 >> PLEASE GO AHEAD. 2876 01:57:23,320 --> 01:57:28,040 >> MY NAME IS MARNEY SMIDGE AND 2877 01:57:28,040 --> 01:57:32,960 SON BORN IN 2020 AND WOULD BE 3 2878 01:57:32,960 --> 01:57:34,480 TODAY. I WANT TO TALK ABOUT 2879 01:57:34,480 --> 01:57:39,240 POWER OF NIH AND SUCCESS STORY 2880 01:57:39,240 --> 01:57:42,560 THEY HAVE SAVING BABIES. IN 2881 01:57:42,560 --> 01:57:49,200 EARLY 1990S NIH EMPLOYED MAIRI 2882 01:57:49,200 --> 01:57:50,600 AN WILLINGER WHO OVERSAW 2883 01:57:50,600 --> 01:57:55,160 RESEARCH PROGRAMS ON SIDS SHE 2884 01:57:55,160 --> 01:57:58,200 LED THE SAFE TEST LEAD CAMPAIGN 2885 01:57:58,200 --> 01:58:00,120 TELLING PARENTS TO PUT BABIES ON 2886 01:58:00,120 --> 01:58:01,720 THEIR BACKS THIS CAMPAIGN 2887 01:58:01,720 --> 01:58:03,880 REDUCED RATE OF SIDS RELATED 2888 01:58:03,880 --> 01:58:06,400 DEATH IN US BY 50% OVER 15 2889 01:58:06,400 --> 01:58:06,720 YEARS. 2890 01:58:06,720 --> 01:58:09,480 I WANT TO REPEAT THAT THIS 2891 01:58:09,480 --> 01:58:13,360 CAMPAIGN REDUCED SIDS DEATHS BY 2892 01:58:13,360 --> 01:58:15,560 50%, WHICH IS AN ASTOUNDING 2893 01:58:15,560 --> 01:58:18,000 ACCOMPLISHMENT THAT WENT FROM 2894 01:58:18,000 --> 01:58:21,160 4,000 TO 2,000. 2895 01:58:21,160 --> 01:58:23,960 I WANT TO DIRECTLY ADDRESS THE 2896 01:58:23,960 --> 01:58:24,960 STILLBIRTH COUNCIL. 2897 01:58:24,960 --> 01:58:27,960 I IMPLORE YOU NOW TO TURN YOUR 2898 01:58:27,960 --> 01:58:29,440 ATTENTION TO ANOTHER ISSUE 2899 01:58:29,440 --> 01:58:31,520 THREATENING LIVES OF THOUSANDS 2900 01:58:31,520 --> 01:58:35,160 OF BABIES, STILLBIRTH AND DEMAND 2901 01:58:35,160 --> 01:58:38,040 RESEARCH AND RESOURCES TO 2902 01:58:38,040 --> 01:58:40,120 ULTIMATELY DRIVE PREVENTION 2903 01:58:40,120 --> 01:58:41,200 THROUGH IMPLEMENTATION SCIENCE 2904 01:58:41,200 --> 01:58:44,960 WITH SAFE TO SLEEP CAMPAIGN NIH 2905 01:58:44,960 --> 01:58:47,120 SAVED THOUSANDS OF LIVES AND 2906 01:58:47,120 --> 01:58:48,240 EDUCATED THE NATION. WE HAVE 2907 01:58:48,240 --> 01:58:50,280 SEEN THE POWER OF THE NIH AND 2908 01:58:50,280 --> 01:58:51,920 THE PEOPLE YOU WORK WITH. I 2909 01:58:51,920 --> 01:58:53,640 WANT TO REMIND YOU THE COUNCIL 2910 01:58:53,640 --> 01:58:55,840 OF THE POWER YOU HOLD. 2911 01:58:55,840 --> 01:58:59,160 AS HIGHLY ESTEEMED DOCTORS, YOU 2912 01:58:59,160 --> 01:59:00,520 HAVE INCREDIBLE PRIVILEGE. 2913 01:59:00,520 --> 01:59:03,000 SOCIETY GIVES YOU RIGHTS AND 2914 01:59:03,000 --> 01:59:05,720 LICENSES THAT IT GIVES TO NO ONE 2915 01:59:05,720 --> 01:59:07,480 ELSE AND RETURN FOR PROMISE TO 2916 01:59:07,480 --> 01:59:09,240 PUT INTEREST OF THOSE YOU CARE 2917 01:59:09,240 --> 01:59:11,520 FOR AHEAD OF YOUR OWN. THAT 2918 01:59:11,520 --> 01:59:16,520 PROMISE AND OBLIGATION GIVE YOU 2919 01:59:16,520 --> 01:59:19,440 VOICE AND PUBLIC DISCOURSE 2920 01:59:19,440 --> 01:59:20,160 BECAUSE OF THE OATH YOU HAVE 2921 01:59:20,160 --> 01:59:21,400 SWORN AND ARE ASKING YOU PEOPLE 2922 01:59:21,400 --> 01:59:23,880 IN POWER TO SAY TO OTHERS IN 2923 01:59:23,880 --> 01:59:32,640 POWER THAT WE CANNOT ALLOW 3,000 2924 01:59:32,640 --> 01:59:39,120 BABIES STILLBORNS EACH YEAR. 2925 01:59:39,120 --> 01:59:42,400 EPIDEMIC FUELED BY RACISM, 2926 01:59:42,400 --> 01:59:44,120 COMPLACENCY FATALISM POVERTY AND 2927 01:59:44,120 --> 01:59:47,960 INJUSTICE WE REMIND YOU YOUR 2928 01:59:47,960 --> 01:59:50,520 VOICE IS POWERFUL AND YOU CAN BE 2929 01:59:50,520 --> 01:59:52,280 LOUD AND FORCEFUL. YOU WILL BE 2930 01:59:52,280 --> 01:59:55,360 TRUSTED. IN HONOR OF MY SON 2931 01:59:55,360 --> 01:59:56,760 HEATH AND ALL BABIES THAT SHOULD 2932 01:59:56,760 --> 01:59:59,200 BE WITH US, I ASK YOU TO USE 2933 01:59:59,200 --> 02:00:01,200 YOUR VOICE. THANK YOU. 2934 02:00:01,200 --> 02:00:04,680 >> THANK YOU, MARNEY. THANK YOU 2935 02:00:04,680 --> 02:00:09,840 FOR THE TRIBUTE TO DR. 2936 02:00:09,840 --> 02:00:12,280 WILLINGER, WHO WAS PART OF OUR 2937 02:00:12,280 --> 02:00:14,600 STAFF. THANKS FOR HIGHLIGHTING 2938 02:00:14,600 --> 02:00:17,600 HER WORK AND THANKS FOR YOUR 2939 02:00:17,600 --> 02:00:19,200 VERY POWERFUL MESSAGE. 2940 02:00:19,200 --> 02:00:20,120 >> THANK YOU. 2941 02:00:20,120 --> 02:00:23,160 >> I WILL NOW TURN TO DOMINIQUE 2942 02:00:23,160 --> 02:00:24,640 RICE. DOMINIQUE, I BELIEVE I 2943 02:00:24,640 --> 02:00:25,560 JUST SAW YOU. 2944 02:00:25,560 --> 02:00:26,800 >> YES, I AM HERE. 2945 02:00:26,800 --> 02:00:29,240 >> OKAY. GREAT. PLEASE GO 2946 02:00:29,240 --> 02:00:29,680 AHEAD. 2947 02:00:29,680 --> 02:00:32,600 >> THANK YOU. I AM DOMINIQUE 2948 02:00:32,600 --> 02:00:35,200 RICE, MOM TO TJ. I WANT TO 2949 02:00:35,200 --> 02:00:37,000 ACTUALLY INVITE THE COUNCIL OR 2950 02:00:37,000 --> 02:00:42,040 THE MEMBERS IF THEY FEEL SO 2951 02:00:42,040 --> 02:00:43,960 CALLED TO SHOW YOUR CAMERA OR 2952 02:00:43,960 --> 02:00:46,000 TURN IT OFF THAT WOULD BE GREAT 2953 02:00:46,000 --> 02:00:47,240 AND WOULD LOVE THE OPPORTUNITY 2954 02:00:47,240 --> 02:00:49,560 AFTER SUCH AN EXPENSIVE DAY 2955 02:00:49,560 --> 02:00:51,560 HEARING AND HOLDING OUR STORIES 2956 02:00:51,560 --> 02:00:53,320 TO ACTUALLY SEE YOUR FACES AND 2957 02:00:53,320 --> 02:00:55,440 SEE WHO IS ON THE RECEIVING END. 2958 02:00:55,440 --> 02:00:59,080 I AM NOT GOING TO GO SO IN DEPTH 2959 02:00:59,080 --> 02:01:03,920 IN MY STORY BECAUSE YOU HAVE 2960 02:01:03,920 --> 02:01:05,600 SPENT THE ENTIRE PAST HOUR AND A 2961 02:01:05,600 --> 02:01:08,400 HALF WITH US IN WHAT I REFER TO 2962 02:01:08,400 --> 02:01:10,120 AS A SACRED SPACE. 2963 02:01:10,120 --> 02:01:12,280 THIS IS THE TRANSFER OF ENERGY 2964 02:01:12,280 --> 02:01:15,040 FOR US. WE LIVE THIS EVERY 2965 02:01:15,040 --> 02:01:19,400 SINGLE MINUTE OF THE DAY. 2966 02:01:19,400 --> 02:01:23,080 BEING PART OF THIS GROUP, WE 2967 02:01:23,080 --> 02:01:25,400 RECOGNIZE THAT IT TAKES COURAGE. 2968 02:01:25,400 --> 02:01:28,920 YOU ARE ON THE FRONTLINE. WE 2969 02:01:28,920 --> 02:01:32,160 ARE ENTRUSTING OUR HEARTS AND 2970 02:01:32,160 --> 02:01:36,160 OUR CHILDREN WITH YOU FOR THE 2971 02:01:36,160 --> 02:01:38,960 BENEFIT TO CREATE CHANGE THAT 2972 02:01:38,960 --> 02:01:40,720 MUST HAPPEN IN THIS EPIDEMIC 2973 02:01:40,720 --> 02:01:44,120 THAT IS STILLBIRTH. 2974 02:01:44,120 --> 02:01:46,440 SO, I WANT TO PAUSE AND 2975 02:01:46,440 --> 02:01:48,920 RECOGNIZE THAT AFTER A GOOD TWO 2976 02:01:48,920 --> 02:01:51,400 HOURS THIS CAN BE EMOTIONAL. I 2977 02:01:51,400 --> 02:01:54,160 URGE YOU TO NOT LOOKING AWAY. 2978 02:01:54,160 --> 02:02:00,120 DO NOT LOOK AWAY. MY SON TJ'S 2979 02:02:00,120 --> 02:02:02,440 DEATH WAS PREVENTABLE LIKE THE 2980 02:02:02,440 --> 02:02:03,800 HANDFUL OF BIRTHING PARTNERS 2981 02:02:03,800 --> 02:02:05,440 HERE ON THIS CALL TODAY. WE ARE 2982 02:02:05,440 --> 02:02:08,360 MORE THAN JUST A NUMBER. MY SON 2983 02:02:08,360 --> 02:02:11,200 TJ IS ONE OF FIVE. HE HAD A 2984 02:02:11,200 --> 02:02:13,600 PERFECT PREGNANCY UNTIL IT WAS 2985 02:02:13,600 --> 02:02:17,120 NOT. THERE IS A CLEAR, CLEAR 2986 02:02:17,120 --> 02:02:20,040 DISCREPANCY OF THE EDUCATION OF 2987 02:02:20,040 --> 02:02:21,080 OUR PRACTITIONERS. 2988 02:02:21,080 --> 02:02:23,760 IT IS A RACIST SYSTEM THAT HAS 2989 02:02:23,760 --> 02:02:26,280 TO BE ADDRESSED. ALL OF THE 2990 02:02:26,280 --> 02:02:28,680 WORK THAT IS DONE HERE IN THIS 2991 02:02:28,680 --> 02:02:35,080 GROUP, FRONT AND CENTER, MUST BE 2992 02:02:35,080 --> 02:02:37,520 EQUITABLE ADDRESSING 2993 02:02:37,520 --> 02:02:40,160 SPECIFICALLY FRONT AND CENTER 2994 02:02:40,160 --> 02:02:42,880 OUR BLACK FAMILIES. 2995 02:02:42,880 --> 02:02:45,400 IF WE DON'T FIND A SOLUTION, WE 2996 02:02:45,400 --> 02:02:46,600 ARE GOING TO CONTINUE SEEING 2997 02:02:46,600 --> 02:02:50,560 BLACK FAMILIES AND THEIR 2998 02:02:50,560 --> 02:02:52,240 CHILDREN DIE. 2999 02:02:52,240 --> 02:02:56,040 ONCE WE ADDRESS THIS EPIDEMIC, 3000 02:02:56,040 --> 02:02:58,840 CAN WE SEE ANY CHANGE? 3001 02:02:58,840 --> 02:03:03,280 AND WITH THAT, I AM HERE CALLING 3002 02:03:03,280 --> 02:03:05,520 TO THE COUNCIL MOVING FORWARD AS 3003 02:03:05,520 --> 02:03:07,920 YOU -- AS YOU REGROUP AND TAKE A 3004 02:03:07,920 --> 02:03:09,720 LOOK AT YOUR NOTES SEEING HOW 3005 02:03:09,720 --> 02:03:14,560 MANY FAMILIES SHARED X, Y, AND 3006 02:03:14,560 --> 02:03:17,160 Z. THAT FRONT AND CENTER. 3007 02:03:17,160 --> 02:03:19,920 FRONT AND CENTER IS SOLUTIONS 3008 02:03:19,920 --> 02:03:21,680 FOR OUR BLACK FAMILIES. 3009 02:03:21,680 --> 02:03:24,400 WITH THAT, IT IS ESSENTIAL THAT 3010 02:03:24,400 --> 02:03:26,280 WE LOOK AT VARIOUS FACTORS NOT 3011 02:03:26,280 --> 02:03:28,720 THE TRADITIONAL. I WILL SAY 3012 02:03:28,720 --> 02:03:31,200 TRADITIONAL FACTORS, WHICH ARE 3013 02:03:31,200 --> 02:03:33,680 ALSO ROOTED IN RACISM. OKAY? 3014 02:03:33,680 --> 02:03:35,840 I THINK THAT IS EXTREMELY 3015 02:03:35,840 --> 02:03:38,400 IMPORTANT FOR EVERYONE HERE TO 3016 02:03:38,400 --> 02:03:41,080 RECOGNIZE. I WILL CALL YOU TO 3017 02:03:41,080 --> 02:03:42,840 PLEASE. I WILL URGE YOU AND 3018 02:03:42,840 --> 02:03:44,720 LIST YOU, WHEN YOU GO BACK IN 3019 02:03:44,720 --> 02:03:47,200 YOUR ROOMS TO -- TO DEBRIEF AND 3020 02:03:47,200 --> 02:03:48,960 TO RESEARCH WHAT THAT 3021 02:03:48,960 --> 02:03:50,000 ESSENTIALLY MEANS. 3022 02:03:50,000 --> 02:03:54,200 WE HAVE TO COLLECTIVELY DO THIS 3023 02:03:54,200 --> 02:03:56,200 TOGETHER IN LISTING THE CHARITY 3024 02:03:56,200 --> 02:03:58,640 PARTNERS ACROSS THE COUNTRY. 3025 02:03:58,640 --> 02:04:04,120 I GO BACK TO ONE OF THE -- THE 3026 02:04:04,120 --> 02:04:06,880 HANDFUL OF RECOMMENDATIONS AS 3027 02:04:06,880 --> 02:04:08,680 WELL REALLY HAVING AND WALKING 3028 02:04:08,680 --> 02:04:11,160 HAND IN HAND WITH OUR PARENTS 3029 02:04:11,160 --> 02:04:12,800 THAT HAVE EXPERIENCED 3030 02:04:12,800 --> 02:04:15,560 STILLBIRTH. JUST LIKE YOUR 3031 02:04:15,560 --> 02:04:17,160 WORKING GROUP BEING SOME OF THE 3032 02:04:17,160 --> 02:04:20,880 BRILLIANT ACROSS THE COUNTRY, WE 3033 02:04:20,880 --> 02:04:22,000 BIRTHING PARENTS IN THIS 3034 02:04:22,000 --> 02:04:25,040 COMMUNITY HERE, ARE SOME OF THE 3035 02:04:25,040 --> 02:04:26,080 MOST BRILLIANT INDIVIDUALS. WE 3036 02:04:26,080 --> 02:04:28,400 HAVE HAD TO EDUCATE OURSELVES SO 3037 02:04:28,400 --> 02:04:31,200 THAT WE COULD SAVE OTHER PEOPLE 3038 02:04:31,200 --> 02:04:33,160 BECAUSE OF THE SYSTEMIC ISSUES 3039 02:04:33,160 --> 02:04:34,680 THAT WE ARE CLEARLY FACING. 3040 02:04:34,680 --> 02:04:38,480 SO, I WANT TO BRING IT BACK AND 3041 02:04:38,480 --> 02:04:40,000 THANK YOU ALL FOR TURNING ON 3042 02:04:40,000 --> 02:04:43,160 YOUR CAMERAS SO I CAN SEE YOUR 3043 02:04:43,160 --> 02:04:44,440 FACES AND IN MAKING THAT 3044 02:04:44,440 --> 02:04:46,080 COMMITMENT AND SEEING MORE THAN 3045 02:04:46,080 --> 02:04:47,720 JUST A PAPER AND SEEING MORE 3046 02:04:47,720 --> 02:04:50,080 THAN JUST A NUMBER. ALL THESE 3047 02:04:50,080 --> 02:04:52,000 TREMENDOUS FAMILIES HERE, WE 3048 02:04:52,000 --> 02:04:54,560 HOLD THIS EVERY SINGLE DAY. WE 3049 02:04:54,560 --> 02:04:57,760 HOLD THIS EVERY SINGLE DAY. IT 3050 02:04:57,760 --> 02:05:00,280 IS BEYOND JUST ONE EVENT. WE 3051 02:05:00,280 --> 02:05:02,080 LIVE THEIR DEATH EVERY SINGLE 3052 02:05:02,080 --> 02:05:02,600 DAY. 3053 02:05:02,600 --> 02:05:07,040 WITH THAT, JUST TO KIND OF 3054 02:05:07,040 --> 02:05:10,160 RECAP, RESEARCH, EQUITABLE 3055 02:05:10,160 --> 02:05:12,320 RESEARCH, EQUITABLE RESOURCES 3056 02:05:12,320 --> 02:05:14,080 THAT FRONT AND CENTER SUPPORT 3057 02:05:14,080 --> 02:05:16,800 OUR BLACK FAMILIES AND 3058 02:05:16,800 --> 02:05:19,040 MARGINALIZED COMMUNITIES, OKAY? 3059 02:05:19,040 --> 02:05:21,320 IT MUST HAPPEN. IN ADDITION TO 3060 02:05:21,320 --> 02:05:23,040 THAT, REALLY TAKING A 3061 02:05:23,040 --> 02:05:25,040 PARTNERSHIP WITH PARENTS; RIGHT? 3062 02:05:25,040 --> 02:05:27,360 NO MATTER WHAT THEIR EDUCATION, 3063 02:05:27,360 --> 02:05:29,120 NO MATTER WHERE THEY COME FROM 3064 02:05:29,120 --> 02:05:31,400 ACROSS THE COUNTRY, WE ARE AN 3065 02:05:31,400 --> 02:05:33,160 ASSET. WE BOTH HAVE A SIMILAR 3066 02:05:33,160 --> 02:05:37,080 GOAL OF, YOU KNOW, CREATING OR 3067 02:05:37,080 --> 02:05:38,840 REALLY TACKLING STILLBIRTH 3068 02:05:38,840 --> 02:05:40,280 NUMBERS ACROSS THE COUNTRY 3069 02:05:40,280 --> 02:05:41,920 BECAUSE IT MUST HAPPEN. WE WANT 3070 02:05:41,920 --> 02:05:43,520 TO MAKE SURE THAT MOVING FORWARD 3071 02:05:43,520 --> 02:05:46,640 AND WE KNOW THAT HERE WE ARE ON 3072 02:05:46,640 --> 02:05:48,560 JANUARY FIFTH. THE NEXT 3073 02:05:48,560 --> 02:05:50,440 OPPORTUNITY, WE WANT TO BE AT 3074 02:05:50,440 --> 02:05:53,120 THE TABLE AND LISTEN TO 3075 02:05:53,120 --> 02:05:53,840 COLLECTIVELY. THIS IS AN 3076 02:05:53,840 --> 02:05:56,120 OPPORTUNITY FOR US TO REALLY 3077 02:05:56,120 --> 02:06:00,240 PARTNER AND LEVERAGE SOME OF OUR 3078 02:06:00,240 --> 02:06:02,120 GRASSROOTS PARTNERSHIPS THAT WE 3079 02:06:02,120 --> 02:06:04,280 HAVE HAD OR GRASSROOTS RESOURCES 3080 02:06:04,280 --> 02:06:05,960 THAT WE HAVE FROM 3081 02:06:05,960 --> 02:06:07,840 INTERNATIONALLY AS WELL AS 3082 02:06:07,840 --> 02:06:10,520 REALLY ACROSS THE COUNTRY. 3083 02:06:10,520 --> 02:06:14,640 SO, I URGE YOU TO PLEASE, YOU 3084 02:06:14,640 --> 02:06:16,640 KNOW HEAR WHAT WE HAVE TO SAY. 3085 02:06:16,640 --> 02:06:18,960 THANK YOU FOR THE TIME. I'M 3086 02:06:18,960 --> 02:06:20,880 COMPLETE. ONCE AGAIN I'M 3087 02:06:20,880 --> 02:06:23,080 DOMINIQUE RICE, MOTHER TO TJ. 3088 02:06:23,080 --> 02:06:23,480 THANK YOU. 3089 02:06:23,480 --> 02:06:26,320 >> THANK YOU DOMINIQUE. THANK 3090 02:06:26,320 --> 02:06:28,120 YOU FOR RAISING YOUR POINTS. 3091 02:06:28,120 --> 02:06:32,120 WE REALLY DO HEAR THEM. 3092 02:06:32,120 --> 02:06:38,920 I WILL TURN NOW TO ROSE MARRY 3093 02:06:38,920 --> 02:06:41,160 TURNIYAY SPEAKING ON BEHALF OF 3094 02:06:41,160 --> 02:06:45,920 THE NATIONAL CENTER FOR FATALITY 3095 02:06:45,920 --> 02:06:47,600 AND PREVENTION. ROSE MARRY, ARE 3096 02:06:47,600 --> 02:06:48,880 YOU WITH US? 3097 02:06:48,880 --> 02:06:51,720 YOU ARE MUTED OR WE ARE HAVING 3098 02:06:51,720 --> 02:06:53,040 SOUND ISSUES. 3099 02:06:53,040 --> 02:06:53,680 TAKE A MOMENT. 3100 02:06:53,680 --> 02:06:56,800 >> CAN YOU HEAR ME NOW? 3101 02:06:56,800 --> 02:06:57,680 >> I CAN. 3102 02:06:57,680 --> 02:07:01,560 >> THANK YOU. MY HEADSET WAS A 3103 02:07:01,560 --> 02:07:04,120 PROBLEM. I APOLOGIZE AND THANK 3104 02:07:04,120 --> 02:07:06,960 YOU ELLIS FOR THIS OPPORTUNITY. 3105 02:07:06,960 --> 02:07:09,200 I'M ROSE MARRY AND SPEAKING ON 3106 02:07:09,200 --> 02:07:11,160 BEHALF OF NATIONAL CENTER FOR 3107 02:07:11,160 --> 02:07:12,680 FATALITY REVIEW AND PREVENTION 3108 02:07:12,680 --> 02:07:14,400 AND NATIONAL CENTER IS FEDERALLY 3109 02:07:14,400 --> 02:07:17,480 FUNDED DATA AND RESOURCE CENTER 3110 02:07:17,480 --> 02:07:19,440 SUPPORTING CHILD DEATH REVIEW 3111 02:07:19,440 --> 02:07:21,080 AND FETAL INFANT MORTALITY 3112 02:07:21,080 --> 02:07:23,960 PROGRAMS ACROSS THE COUNTRY AND 3113 02:07:23,960 --> 02:07:25,520 GRATEFULLY ACKNOWLEDGE 3114 02:07:25,520 --> 02:07:28,120 PARTNERSHIP AND FUNDING FROM 3115 02:07:28,120 --> 02:07:29,880 HEALTH RESOURCES AND 3116 02:07:29,880 --> 02:07:31,000 ADMINISTRATION AND COMMENTS 3117 02:07:31,000 --> 02:07:34,120 TODAY ARE SOLELY MY 3118 02:07:34,120 --> 02:07:35,640 RESPONSIBILITY AND SHOULDN'T BE 3119 02:07:35,640 --> 02:07:36,680 CONSTRUED AS OFFICIAL POSITION 3120 02:07:36,680 --> 02:07:39,120 OF THE US GOVERNMENT. I WANT TO 3121 02:07:39,120 --> 02:07:41,160 START BY OFFERING FIRST 3122 02:07:41,160 --> 02:07:45,000 HEARTFELT CONDOLENCES TO ALL 3123 02:07:45,000 --> 02:07:46,800 SPEAKERS WHO PROCEEDED ME AND 3124 02:07:46,800 --> 02:07:48,720 HONOR THEIR GRIEF AND STORIES 3125 02:07:48,720 --> 02:07:50,280 AND COURAGE BRINGING EXPERIENCES 3126 02:07:50,280 --> 02:07:52,120 HERE TO THIS GROUP TODAY. 3127 02:07:52,120 --> 02:07:55,640 I'M OFFERING MY COMMENTS TO 3128 02:07:55,640 --> 02:07:57,600 BRING TO THIS STILLBIRTH WORKING 3129 02:07:57,600 --> 02:07:59,240 GROUP COUNCIL GREATER AWARENESS 3130 02:07:59,240 --> 02:08:01,040 OF PROGRAM AND NEED IT MEETS AND 3131 02:08:01,040 --> 02:08:03,800 AS WE HEARD IN THE THREE 3132 02:08:03,800 --> 02:08:04,840 PREVIOUS MEETINGS BEFORE TODAY 3133 02:08:04,840 --> 02:08:07,320 BURDEN OF FETAL INFANT MORTALITY 3134 02:08:07,320 --> 02:08:09,440 IN THIS COUNTRY IS HUGE. EVERY 3135 02:08:09,440 --> 02:08:13,960 YEAR OVER 21,000 INFANTS BORN 3136 02:08:13,960 --> 02:08:15,880 LIVE DIE BEFORE THEY REACH THEIR 3137 02:08:15,880 --> 02:08:17,160 FIRST BIRTHDAY AND EQUAL NUMBER 3138 02:08:17,160 --> 02:08:20,480 OF PREGNANCIES IN US OR IN 3139 02:08:20,480 --> 02:08:22,760 STILLBIRTH OR FETAL DEATH. 3140 02:08:22,760 --> 02:08:24,920 REVIEW IS A COMMUNITY BASED 3141 02:08:24,920 --> 02:08:28,040 ACTION ORIENTED PROGRAM AIMED AT 3142 02:08:28,040 --> 02:08:29,760 IMPROVING SERVICES SYSTEMS AND 3143 02:08:29,760 --> 02:08:31,920 RESOURCES FOR WOMEN AND INFANTS 3144 02:08:31,920 --> 02:08:34,680 AND FAMILIES AND THE PROGRAM 3145 02:08:34,680 --> 02:08:35,880 BRINGS TOGETHER 3146 02:08:35,880 --> 02:08:36,680 MULTI-DISCIPLINARY COMMUNITY 3147 02:08:36,680 --> 02:08:38,800 TEAMS TO EXAMINE CONFIDENTIAL 3148 02:08:38,800 --> 02:08:41,320 DEIDENTIFIED CASES OF FETAL AND 3149 02:08:41,320 --> 02:08:43,400 INFANT DEATH FOR PURPOSE OF 3150 02:08:43,400 --> 02:08:44,440 UNDERSTANDING FAMILY'S 3151 02:08:44,440 --> 02:08:46,760 EXPERIENCES INCLUDING RACISM AND 3152 02:08:46,760 --> 02:08:49,600 HOW THOSE EXPERIENCES HAVE 3153 02:08:49,600 --> 02:08:52,040 IMPACTED THEIR PREGNANCY 3154 02:08:52,040 --> 02:08:53,240 OUTCOMES AND GOAL OF FEMUR IS 3155 02:08:53,240 --> 02:08:54,480 TAKING WHAT WE CAN LEARN FROM 3156 02:08:54,480 --> 02:08:57,800 CASE REVIEWS TO PREVENT 3157 02:08:57,800 --> 02:08:58,680 TRAGEDIES FROM HAPPENING TO 3158 02:08:58,680 --> 02:09:00,440 OTHER FAMILIES AND WANT TO BRING 3159 02:09:00,440 --> 02:09:03,640 TO YOUR ATTENTION A COUPLE KEY 3160 02:09:03,640 --> 02:09:05,040 OPERATING PRINCIPLES OF FEMUR 3161 02:09:05,040 --> 02:09:07,720 FETAL AND INFANT DEATHS ARE 3162 02:09:07,720 --> 02:09:09,920 EVENTS ILLUSTRATING NEED FOR 3163 02:09:09,920 --> 02:09:11,920 INVESTIGATION AND ACTION. FEMUR 3164 02:09:11,920 --> 02:09:15,920 FOCUSES ON SYSTEMS ISSUES NOT 3165 02:09:15,920 --> 02:09:16,480 PLACING BLAME OR PERSONAL 3166 02:09:16,480 --> 02:09:18,200 RESPONSIBILITY ON INDIVIDUALS OR 3167 02:09:18,200 --> 02:09:20,520 BEHAVIORS AND PARENT AND FAMILY 3168 02:09:20,520 --> 02:09:23,080 INTERVIEW WE INCLUDE WITH FEMUR 3169 02:09:23,080 --> 02:09:24,520 PROCESS GIVES VOICE TO THOSE WHO 3170 02:09:24,520 --> 02:09:26,200 LOST AN INFANT OFFERING 3171 02:09:26,200 --> 02:09:28,600 INFORMATION THAT IS NOT 3172 02:09:28,600 --> 02:09:30,360 AVAILABLE THROUGH ROUTINE 3173 02:09:30,360 --> 02:09:31,640 QUANTITATIVE METHODS THAT I 3174 02:09:31,640 --> 02:09:32,880 HEARD ON THIS CALL SO MANY SPEAK 3175 02:09:32,880 --> 02:09:36,240 OF THE NEED FOR DATA. I BELIEVE 3176 02:09:36,240 --> 02:09:38,160 THAT THE FEM YOU ARE PROGRAM 3177 02:09:38,160 --> 02:09:39,480 MEETS THE NEED WITH 3178 02:09:39,480 --> 02:09:41,920 UNDERSTANDING VOICES OF THE 3179 02:09:41,920 --> 02:09:44,040 FAMILIES AND FEMUR REVIEWS LEAD 3180 02:09:44,040 --> 02:09:46,520 TO IDENTIFICATION OF SYSTEMS 3181 02:09:46,520 --> 02:09:47,840 FACTORS CONTRIBUTING TO 3182 02:09:47,840 --> 02:09:49,400 STILLBIRTH AND INFANT MORTALITY 3183 02:09:49,400 --> 02:09:51,920 AND FEM YOU ARE FOCUSES ON 3184 02:09:51,920 --> 02:09:53,520 PREVENTION AND FINDINGS LEAD TO 3185 02:09:53,520 --> 02:09:55,320 EFFECTIVE RECOMMENDATIONS THAT 3186 02:09:55,320 --> 02:09:56,680 IS INFORMED BY VOICES OF THOSE 3187 02:09:56,680 --> 02:09:59,200 WHO HAVE LOST AN INFANT 3188 02:09:59,200 --> 02:10:00,560 IMPROVING SYSTEMS OF CARE, 3189 02:10:00,560 --> 02:10:02,840 RESOURCES AND SERVICES FOR 3190 02:10:02,840 --> 02:10:05,200 WOMEN, INFANTS AND FAMILIES AND 3191 02:10:05,200 --> 02:10:07,520 TODAY THERE ARE APPROXIMATELY 3192 02:10:07,520 --> 02:10:09,400 152 LOCAL FEM YOU ARE PROGRAMS 3193 02:10:09,400 --> 02:10:11,200 OPERATING IN 26 STATES AND 3194 02:10:11,200 --> 02:10:13,480 DISTRICT OF COLUMBIA AND 2 3195 02:10:13,480 --> 02:10:15,600 ADDITIONAL US TERRITORIES. 3196 02:10:15,600 --> 02:10:18,320 WE CAN DO MORE. FEMURS REACH 3197 02:10:18,320 --> 02:10:21,120 AND IMPACT CAN BE IMPROVED BY 3198 02:10:21,120 --> 02:10:23,080 EXPANSION OF PRO PROGRAM TO 3199 02:10:23,080 --> 02:10:24,440 LOCAL OR STATE JURISDICTION 3200 02:10:24,440 --> 02:10:27,600 WISHING TO IMPROVE SURVEILLANCE 3201 02:10:27,600 --> 02:10:29,280 PREVENTION EFFORTS AROUND 3202 02:10:29,280 --> 02:10:31,480 STILLBIRTH AND INFANT DEATHS AND 3203 02:10:31,480 --> 02:10:33,720 SEEN FIRSTHAND POSITIVE IMPACT 3204 02:10:33,720 --> 02:10:35,520 FEM YOU ARE CAN HAVE CON 3205 02:10:35,520 --> 02:10:38,000 COMMUNITIES CAN REGISTERED NURSE 3206 02:10:38,000 --> 02:10:42,520 SERVING 30 YEARS IN LOCAL STATE 3207 02:10:42,520 --> 02:10:44,880 NATIONAL EFFORTS -- INFANT 3208 02:10:44,880 --> 02:10:46,560 DEATHS THROUGH FEM YOU ARE 3209 02:10:46,560 --> 02:10:48,680 PROCESS AND ENHANCING 3210 02:10:48,680 --> 02:10:50,600 BEREAVEMENT SUPPORT AND SERVICES 3211 02:10:50,600 --> 02:10:52,720 FOR FAMILIES. FEM YOU ARE 3212 02:10:52,720 --> 02:10:55,440 BROUGHT ABOUT ADOPTION OF 3213 02:10:55,440 --> 02:10:59,160 EVIDENCE BASED EFFORTS LIKE 3214 02:10:59,160 --> 02:11:02,400 COUNT THE KICKS AND IN-DEPTH 3215 02:11:02,400 --> 02:11:05,200 EXPLORATION TO CONTRIBUTORS TO 3216 02:11:05,200 --> 02:11:08,640 FETAL INFANT MORTALITY AND 3217 02:11:08,640 --> 02:11:10,200 HAVING A CLEARER UNDERSTANDING 3218 02:11:10,200 --> 02:11:14,240 OF UNDERLYING RISK FACTORS AND 3219 02:11:14,240 --> 02:11:17,360 INEQUITIES THEY MAY NOT 3220 02:11:17,360 --> 02:11:18,640 OTHERWISE IDENTIFY. THANK YOU 3221 02:11:18,640 --> 02:11:19,920 FOR THIS OPPORTUNITY TO SPEAK TO 3222 02:11:19,920 --> 02:11:22,000 THE COUNCIL. 3223 02:11:22,000 --> 02:11:24,480 >> THANK YOU ROS EMARY AND FOR 3224 02:11:24,480 --> 02:11:28,120 YOUR WORK IN THE AREA SUPPORTING 3225 02:11:28,120 --> 02:11:29,920 THOSE IN THE COUNTRY WITH DATA 3226 02:11:29,920 --> 02:11:32,120 THEY NEED. WE APPRECIATE YOUR 3227 02:11:32,120 --> 02:11:33,400 COMMENTS VERY MUCH. 3228 02:11:33,400 --> 02:11:36,040 LOOKING AT OUR LIST AND LOOKING 3229 02:11:36,040 --> 02:11:43,240 TO SEE IF FERNANDA SHER ADDONE 3230 02:11:43,240 --> 02:11:46,640 HAS JOINED US TODAY. ARE YOU 3231 02:11:46,640 --> 02:11:53,120 WITH US? 3232 02:11:53,120 --> 02:11:55,560 >> SHE HAD TO DROP OFF 3233 02:11:55,560 --> 02:11:57,440 UNFORTUNATELY. SHE HAD A 3234 02:11:57,440 --> 02:11:58,600 CHILDCARE ISSUE. 3235 02:11:58,600 --> 02:12:01,360 >> SORRY. TRYING TO KEEP US ON 3236 02:12:01,360 --> 02:12:03,720 SCHEDULE AS MUCH AS POSSIBLE. 3237 02:12:03,720 --> 02:12:06,720 PLEASE, WE SEND APOLOGIES TO 3238 02:12:06,720 --> 02:12:08,760 FERNANDA. I WILL REACH OUT. 3239 02:12:08,760 --> 02:12:11,160 THANKS FOR LETTING ME KNOW. 3240 02:12:11,160 --> 02:12:14,720 I WILL TURN TO AMANDA FELTMAN. 3241 02:12:14,720 --> 02:12:21,800 ARE YOU STILL AVAILAVAILABLE, A? 3242 02:12:21,800 --> 02:12:23,120 >> I'M HERE. 3243 02:12:23,120 --> 02:12:25,840 >> OKAY, AMANDA. PLEASE GO 3244 02:12:25,840 --> 02:12:26,080 AHEAD. 3245 02:12:26,080 --> 02:12:28,560 >> HI. I'M AMANDA AND MOM OF 3246 02:12:28,560 --> 02:12:29,920 THREE BEAUTIFUL GIRLS AND HERE 3247 02:12:29,920 --> 02:12:34,040 IN ANGER TODAY OF MY DAUGHTER 3248 02:12:34,040 --> 02:12:35,280 JUNIPER'S PREVENTABLE DEATH. 3249 02:12:35,280 --> 02:12:38,360 THERE IS MY BEAUTIFUL GIRL. 3250 02:12:38,360 --> 02:12:41,120 PART OF MY STORY AND OUR 3251 02:12:41,120 --> 02:12:43,760 EXPERIENCE IS I WAS INVOLVED IN 3252 02:12:43,760 --> 02:12:44,760 STILLBIRTH PREVENTION PRIOR TO 3253 02:12:44,760 --> 02:12:49,400 THE DEATH OF MY OWN DAUGHTER. 3254 02:12:49,400 --> 02:12:50,800 LOCAL STAR LEGACY FOUNDATION AND 3255 02:12:50,800 --> 02:12:53,840 BEFORE I WAS PREGNANT WITH OUR 3256 02:12:53,840 --> 02:12:56,120 FIRST DAUGHTER I WENT THROUGH 3257 02:12:56,120 --> 02:12:57,840 TRAINING TO BE VOLUNTEER 3258 02:12:57,840 --> 02:12:59,520 PHOTOGRAPHER FOR FAMILIES IN 3259 02:12:59,520 --> 02:13:02,160 LOSS SITUATIONS AND GOT PREGNANT 3260 02:13:02,160 --> 02:13:04,640 WITH JUNIPER NOT MADE AWARE OF 3261 02:13:04,640 --> 02:13:07,920 IMPORTANCE OF MONITORING FETAL 3262 02:13:07,920 --> 02:13:10,680 MOVEMENT. 20TH ULTRASOUND THEY 3263 02:13:10,680 --> 02:13:12,560 IDENTIFIED SHE WAS MEASURING 3264 02:13:12,560 --> 02:13:17,200 SMALL IUGR. I WAS SENT TO BE 3265 02:13:17,200 --> 02:13:21,440 UNDER CARE OF IFM. HIGH LEVEL 3266 02:13:21,440 --> 02:13:25,320 OF MFM CARE I WAS NOT MADE AWARE 3267 02:13:25,320 --> 02:13:27,040 TO MONITOR HER FETAL MOVEMENTS 3268 02:13:27,040 --> 02:13:28,840 IN FACT I FELT THE OPPOSITE I 3269 02:13:28,840 --> 02:13:30,640 DIDN'T HAVE TO MONITOR FETAL 3270 02:13:30,640 --> 02:13:32,480 MOVEMENTS I HAD WEEKLY AND TWICE 3271 02:13:32,480 --> 02:13:37,520 A WEEK NSTS AND MBPPS. SEEN BY 3272 02:13:37,520 --> 02:13:40,120 SO MANY DOCTORS I DIDN'T FEEL I 3273 02:13:40,120 --> 02:13:42,440 COULD QUESTION THE CARE I WAS 3274 02:13:42,440 --> 02:13:46,600 GIVEN. WHEN SHE DIED AND WAS 3275 02:13:46,600 --> 02:13:48,520 BORN TWO THINGS SHOULDN'T HAVE 3276 02:13:48,520 --> 02:13:51,160 HAPPENED IN THE ORDER MY 3277 02:13:51,160 --> 02:13:52,800 TRAINING WITH THE LEGACY I KNEW 3278 02:13:52,800 --> 02:13:54,400 WHAT TO DO IN A HOSPITAL MANY 3279 02:13:54,400 --> 02:13:56,080 DIDN'T KNOW WHAT TO DO IN THE 3280 02:13:56,080 --> 02:13:57,280 SITUATION. I DIDN'T KNOW WHAT 3281 02:13:57,280 --> 02:14:01,840 CAME NEXT. I KNEW THAT OR 3282 02:14:01,840 --> 02:14:03,560 THOUGHT THAT AFTER BEING A NURSE 3283 02:14:03,560 --> 02:14:05,040 UNDER SUCH CLOSE CARE THAT THE 3284 02:14:05,040 --> 02:14:06,440 DOCTORS WOULD BE ASKING 3285 02:14:06,440 --> 02:14:08,120 QUESTIONS OR IT THAT I COULD ASK 3286 02:14:08,120 --> 02:14:08,480 QUESTIONS. 3287 02:14:08,480 --> 02:14:14,080 IT FELT LIKE I HAD TO PUSH FOR 3288 02:14:14,080 --> 02:14:15,360 MOR APPOINTMENTS AND ASK THOSE 3289 02:14:15,360 --> 02:14:16,760 QUESTIONS AND GETTING PREGNANT 3290 02:14:16,760 --> 02:14:18,560 AGAIN WAS TERRIFYING AND 3291 02:14:18,560 --> 02:14:21,320 REMEMBER MY OB ASKING ME WHAT 3292 02:14:21,320 --> 02:14:23,440 MOR CAN WE DO AFTER BEING UNDER 3293 02:14:23,440 --> 02:14:25,080 SUCH CLOSE CARE IT FELT LIKE AN 3294 02:14:25,080 --> 02:14:28,000 INSANE REQUEST. I LEARNED ABOUT 3295 02:14:28,000 --> 02:14:30,760 EPV AND MEASURING PLACENTA 3296 02:14:30,760 --> 02:14:33,200 DURING PREGNANCY WHICH WAS 3297 02:14:33,200 --> 02:14:35,040 SOMETHING ON RADAR WHEN JUNE WAS 3298 02:14:35,040 --> 02:14:36,440 MEASURING SMALL. I LEARNED 3299 02:14:36,440 --> 02:14:38,720 ABOUT THAT WHEN I WAS PREGNANT 3300 02:14:38,720 --> 02:14:41,200 WITH SECOND DAUGHTER WHO IS 3301 02:14:41,200 --> 02:14:42,280 THANKFULLY WONDERFULLY HERE 3302 02:14:42,280 --> 02:14:43,880 ALIVE. I LEARNED THAT DOCTORS 3303 02:14:43,880 --> 02:14:47,520 DID NOT WANT TO DO ANYTHING 3304 02:14:47,520 --> 02:14:49,920 MORE. I WAS ASKED WHAT MORE 3305 02:14:49,920 --> 02:14:56,560 COULD WE DO IN MY CARE. 3306 02:14:56,560 --> 02:14:57,520 PUSHBACK. IT WAS UNNECESSARY 3307 02:14:57,520 --> 02:14:58,880 AND THEY DIDN'T KNOW WHAT TO DO 3308 02:14:58,880 --> 02:15:01,640 WITH THE INFO. I LEARNED 3309 02:15:01,640 --> 02:15:02,840 BASICALLY THAT THEY DIDN'T WANT 3310 02:15:02,840 --> 02:15:07,440 TO PREVENT STILLBIRTH IS HOW IT 3311 02:15:07,440 --> 02:15:08,040 FEELS, ANYWAYS. 3312 02:15:08,040 --> 02:15:10,680 BECAUSE OF THAT I HAVE BECOME AN 3313 02:15:10,680 --> 02:15:13,920 ADVOCATE ON INSTAGRAM AND HAVE A 3314 02:15:13,920 --> 02:15:16,120 COMMUNITY OF MOMS WITH DEAD BABY 3315 02:15:16,120 --> 02:15:18,560 MOMS IF YOU WILL. I SHARE LOTS 3316 02:15:18,560 --> 02:15:19,640 ABOUT THE GRIEF EXPERIENCE THERE 3317 02:15:19,640 --> 02:15:21,320 AND IMPORTANCE OF MONITORING 3318 02:15:21,320 --> 02:15:22,760 FETAL MOVEMENTS AND IMPORTANCE 3319 02:15:22,760 --> 02:15:25,360 OF MEASURING THE PLACENTA AND 3320 02:15:25,360 --> 02:15:28,120 WRITTEN LETTERS TO ACOG DON'T 3321 02:15:28,120 --> 02:15:29,160 KNOW HOW MANY LETTERS I 3322 02:15:29,160 --> 02:15:30,480 SEPTEMBER TO THEM HOPING THEY 3323 02:15:30,480 --> 02:15:32,920 WILL START TO PAY ATTENTION TO 3324 02:15:32,920 --> 02:15:34,520 THIS IMPORTANT STILLBIRTH 3325 02:15:34,520 --> 02:15:37,800 PREVENTION METHOD AND I ALSO 3326 02:15:37,800 --> 02:15:38,840 PARTICIPATED IN MEETINGS LIKE 3327 02:15:38,840 --> 02:15:41,240 THIS AND GOING BACK TO HOW I 3328 02:15:41,240 --> 02:15:44,880 STARTED MY INTRO, I GO AND I 3329 02:15:44,880 --> 02:15:46,760 PHOTOGRAPH FAMILIES WHOSE BABIES 3330 02:15:46,760 --> 02:15:48,120 HAVE DIED IN THE HOSPITAL. 3331 02:15:48,120 --> 02:15:50,120 WHILE I HAVE BEEN ON THE CALL 3332 02:15:50,120 --> 02:15:52,440 TODAY I HAVE BEEN EDITING PHOTOS 3333 02:15:52,440 --> 02:15:55,400 OF A BABY BOY THAT DIED AND WAS 3334 02:15:55,400 --> 02:15:59,200 BORN JUST BEFORE CHRISTMAS. HIS 3335 02:15:59,200 --> 02:16:01,320 MOM COMPLAINED TO HER DOCTOR 3336 02:16:01,320 --> 02:16:03,200 ABOUT FETAL MOVEMENT ALPS FOR 3337 02:16:03,200 --> 02:16:04,560 TWO WEEKS AND NOTHING WAS DONE 3338 02:16:04,560 --> 02:16:06,400 AND THEN HE DIED. ALL THAT 3339 02:16:06,400 --> 02:16:08,640 BEING SAID, ALL OF THE ADVOCACY 3340 02:16:08,640 --> 02:16:10,800 THAT IS HAPPENING AND ALL 3341 02:16:10,800 --> 02:16:11,840 PREVENTION AND THE SYSTEM THAT 3342 02:16:11,840 --> 02:16:15,280 WE ARE WORKING WITH IS NOT DOG 3343 02:16:15,280 --> 02:16:17,240 ENOUGH TO SAVE BABY'S LIVES AND 3344 02:16:17,240 --> 02:16:19,640 NEED TO SEE IMPROVEMENTS AND 3345 02:16:19,640 --> 02:16:21,680 STANDARDS OF CARE IMPROVE AND I 3346 02:16:21,680 --> 02:16:24,120 HAVE TO STOP GETTING CALLS TO 3347 02:16:24,120 --> 02:16:26,120 PHOTOGRAPH BABIES WHO HAVE DIED. 3348 02:16:26,120 --> 02:16:27,000 THANK YOU. 3349 02:16:27,000 --> 02:16:28,880 >> THANK YOU AND THANK YOU 3350 02:16:28,880 --> 02:16:30,840 AMANDA. I WILL SAY WHAT YOU DO 3351 02:16:30,840 --> 02:16:33,320 IS SO IMPORTANT, I KNOW, TO YOUR 3352 02:16:33,320 --> 02:16:35,760 FAMILY BUT ALSO TO THOSE OTHER 3353 02:16:35,760 --> 02:16:37,160 FAMILIES AND KNOW PERSONALLY 3354 02:16:37,160 --> 02:16:39,320 THAT HAS MADE A DIFFERENCE FOR 3355 02:16:39,320 --> 02:16:40,600 FRIENDS OF MINE AND THANK YOU 3356 02:16:40,600 --> 02:16:42,600 FOR PROVIDING THAT SERVICE TO 3357 02:16:42,600 --> 02:16:45,000 OTHERS AND THANK YOU FOR SHARING 3358 02:16:45,000 --> 02:16:47,840 YOUR STORY. 3359 02:16:47,840 --> 02:16:52,240 IF I CAN, IS KELLY FRIEDRICH 3360 02:16:52,240 --> 02:16:53,200 STILL ON? 3361 02:16:53,200 --> 02:16:55,520 >> YEAH. HI. THANKS SO MUCH 3362 02:16:55,520 --> 02:16:56,160 FOR THIS OPPORTUNITY. 3363 02:16:56,160 --> 02:16:57,480 >> GO AHEAD. 3364 02:16:57,480 --> 02:16:59,560 >> I WISH THAT I DIDN'T KNOW 3365 02:16:59,560 --> 02:17:03,200 THAT THE DEAD BABY MOMMA CLUB IS 3366 02:17:03,200 --> 02:17:05,480 A SID I WISH I WASN'T PART OF IT 3367 02:17:05,480 --> 02:17:08,480 I FOUND AMANDA ON INSTAGRAM AND 3368 02:17:08,480 --> 02:17:09,640 TO FIND THAT COMMUNITY AND AGAIN 3369 02:17:09,640 --> 02:17:11,080 YOU WISH YOU DIDN'T HAVE TO BE 3370 02:17:11,080 --> 02:17:13,760 PART OF THAT CLUB. WE ARE SOME 3371 02:17:13,760 --> 02:17:16,080 OF THE STRONGEST MOMS I THINK I 3372 02:17:16,080 --> 02:17:19,400 HAVE EVER MET. APRIL 2 EIGHTH, 3373 02:17:19,400 --> 02:17:22,800 2021 GAVE BIRTH TO FIRST SON 3374 02:17:22,800 --> 02:17:25,040 WILLIAM JAMES 6 POUNDS 2 OUNCES 3375 02:17:25,040 --> 02:17:27,720 20 INCHES LONG NEVER GOT TO SEE 3376 02:17:27,720 --> 02:17:29,520 EYES OR HEAR HIM CRY. BORN 3377 02:17:29,520 --> 02:17:32,720 STILL AT 36 WEEKS PREGNANCY 3378 02:17:32,720 --> 02:17:35,680 TOTALLY NORMAL PERFECTLY HEALTHY 3379 02:17:35,680 --> 02:17:38,720 LITTLE BOY AND GROWTH ULTRASOUND 3380 02:17:38,720 --> 02:17:40,880 ON THURSDAY AND LOOKED GREAT SO 3381 02:17:40,880 --> 02:17:43,240 WIGGLY WE COULDN'T GET PICTURE 3382 02:17:43,240 --> 02:17:44,760 OF HIS FACE. SATURDAY AND 3383 02:17:44,760 --> 02:17:47,200 SUNDAY TWO VIRTUAL BABY SHOWERS 3384 02:17:47,200 --> 02:17:49,520 ASKED FAMILY AND FRIENDS TO SEND 3385 02:17:49,520 --> 02:17:51,000 FAVORITE CHILDREN'S BOOKS WITH 3386 02:17:51,000 --> 02:17:53,240 LETTER WRITTEN TO WILL INSTEAD 3387 02:17:53,240 --> 02:17:58,440 OF SENDING GIFTS ON ZOOM-IN HIS 3388 02:17:58,440 --> 02:18:00,480 NURSERY LOVED ONES TOLD ME BUY 3389 02:18:00,480 --> 02:18:02,320 BOOKS THAT ARE THEIR FAVORITES 3390 02:18:02,320 --> 02:18:04,160 TOLD THEM I WAS EXCITED TO MEET 3391 02:18:04,160 --> 02:18:06,880 HIM IN A FEW WEEKS MONDAY 3392 02:18:06,880 --> 02:18:08,120 MORNING WOKE UP EARLY COULDN'T 3393 02:18:08,120 --> 02:18:11,000 GO BACK TO SLEEP DECIDED TO GET 3394 02:18:11,000 --> 02:18:14,120 UP START MY DAY MAKING BREAKFAST 3395 02:18:14,120 --> 02:18:16,120 JOLT OF I DON'T REMEMBER THE 3396 02:18:16,120 --> 02:18:19,360 LAST TIME I FELT WILL MOVE. 3397 02:18:19,360 --> 02:18:20,680 WOKE UP HUSBAND AND TOLD HIM WE 3398 02:18:20,680 --> 02:18:23,960 HAVE TO GO TO DOCTOR. OB'S 3399 02:18:23,960 --> 02:18:27,640 OFFICE TRIED TO DO ON STRESS 3400 02:18:27,640 --> 02:18:28,720 TEST COULDN'T FIND HEARTBEAT 3401 02:18:28,720 --> 02:18:32,480 NURSE PRACTITIONER CAME WITH 3402 02:18:32,480 --> 02:18:33,880 DOPPLAR COULDN'T FIND HEARTBEAT 3403 02:18:33,880 --> 02:18:36,120 I'M A NURSE KNEW HE WAS GONE 3404 02:18:36,120 --> 02:18:38,720 WAITED TO ULTRASOUND ROOM TO 3405 02:18:38,720 --> 02:18:41,120 OPEN UP AND LEAVE. WHEN SAW 3406 02:18:41,120 --> 02:18:42,800 WILL KNEW IMMEDIATELY HE HAD 3407 02:18:42,800 --> 02:18:45,040 GONE FIRST BABY DIED WENT HOME 3408 02:18:45,040 --> 02:18:46,680 WAITED FOR DOCTOR TO CALL US TO 3409 02:18:46,680 --> 02:18:49,360 TRY TO MAKE A PLAN AND SOBBED 3410 02:18:49,360 --> 02:18:50,600 ASKING PHYSICIAN THERE WITH US 3411 02:18:50,600 --> 02:18:52,280 YOU MEAN I HAVE TO GIVE BIRTH TO 3412 02:18:52,280 --> 02:18:54,400 A DEAD BABY AND SHE SAID YEAH. 3413 02:18:54,400 --> 02:18:56,560 I HAD TO CALL MY FAMILY AND CALL 3414 02:18:56,560 --> 02:18:59,040 OUR FRIENDS AND CALL MY BOSS AND 3415 02:18:59,040 --> 02:19:00,840 TELL THEM WE WON'T BE BRINGING A 3416 02:19:00,840 --> 02:19:03,080 BABY HOME. I HAD TO GIVE BIRTH 3417 02:19:03,080 --> 02:19:05,640 TO A BABY THAT HAD DIED. 3418 02:19:05,640 --> 02:19:07,480 TUESDAY MORNING WE DROVE TO THE 3419 02:19:07,480 --> 02:19:09,000 HOSPITAL AND STARTED THE 3420 02:19:09,000 --> 02:19:11,160 INDUCTION PROCESS. 28 HOURS 3421 02:19:11,160 --> 02:19:14,720 LATER 12:45 P.M. WEDNESDAY APRIL 3422 02:19:14,720 --> 02:19:16,920 2 EIGHTH, WILL WAS BORN. PLACED 3423 02:19:16,920 --> 02:19:19,440 ON CHEST AND GOT TO HOLD FIRST 3424 02:19:19,440 --> 02:19:21,720 SON HE NEVER GOT TO CRY HE WAS 3425 02:19:21,720 --> 02:19:23,960 PERFECT AND LOOKED EXACTLY LIKE 3426 02:19:23,960 --> 02:19:24,720 MY HUSBAND. SPENT TIME WITH 3427 02:19:24,720 --> 02:19:27,440 WILL AND GOT TO TAKE SOME 3428 02:19:27,440 --> 02:19:29,800 PICTURES. I WAS DISCHARGED HOME 3429 02:19:29,800 --> 02:19:32,800 WITHOUT OUR BABY 6 HOURS AFTER 3430 02:19:32,800 --> 02:19:34,520 GIVING BIRTH. LEFT HOSPITAL NOT 3431 02:19:34,520 --> 02:19:37,000 KNOWING WHY SON DIED I'M SURE IF 3432 02:19:37,000 --> 02:19:38,480 WE EVER WOULD HAVE AN ANSWER 3433 02:19:38,480 --> 02:19:40,280 FROM THE FIRST HOUR WE FOUND OUT 3434 02:19:40,280 --> 02:19:43,080 ABOUT WILL DYING PEOPLE TOLD US 3435 02:19:43,080 --> 02:19:44,880 YOU PROBABLY WON'T GET AN ANSWER 3436 02:19:44,880 --> 02:19:46,920 OR FIND OUT THESE THINGS HAPPEN 3437 02:19:46,920 --> 02:19:48,720 SOMETIMES WE HAD AN AUTOPSY DONE 3438 02:19:48,720 --> 02:19:50,200 AND WISH I DIDN'T KNOW HOW MUCH 3439 02:19:50,200 --> 02:19:53,840 IT COSTS TO HAVE AN AUTOPSY ON 3440 02:19:53,840 --> 02:19:56,400 MY CHILD. HIS CAUSE OF DEATH IS 3441 02:19:56,400 --> 02:19:58,720 LISTED AS UNKNOWN IT WAS NOTED 3442 02:19:58,720 --> 02:20:01,960 HIS PLACENTA WAS REALLY SMALL. 3443 02:20:01,960 --> 02:20:03,200 WASN'T SATISFIED WITH THIS 3444 02:20:03,200 --> 02:20:05,800 ANSWER HOW COULD A BABY DIE AND 3445 02:20:05,800 --> 02:20:09,680 NOT KNOW CAUSE. WE SOUGHT OUT 3446 02:20:09,680 --> 02:20:11,200 DR. COLLIDEMAN AT YALE AND 3447 02:20:11,200 --> 02:20:14,920 LOOKED AT WILL'S PLACENTA IN 0.3 3448 02:20:14,920 --> 02:20:17,040 PERCENTILE FOR HIS BODY WEIGHT. 3449 02:20:17,040 --> 02:20:21,800 AT 36 WEEKS 6 POUND 2 OUNCES 3450 02:20:21,800 --> 02:20:24,120 WILL'S DEATH PREVENTABLE 3451 02:20:24,120 --> 02:20:25,960 PLACENTA MEASURED THROUGHOUT MY 3452 02:20:25,960 --> 02:20:27,160 PREGNANCY HE WOULD HAVE BEEN 3453 02:20:27,160 --> 02:20:29,200 HERE OR EDUCATED ON IMPORTANCE 3454 02:20:29,200 --> 02:20:31,600 OF KICK COUNTS AND NORMAL 3455 02:20:31,600 --> 02:20:33,400 MOVEMENT PATTERNS HE WOULD HAVE 3456 02:20:33,400 --> 02:20:35,480 BEEN HERE NOT HAVING TO LEAVE 3457 02:20:35,480 --> 02:20:38,000 HOSPITAL WITH BOX INSTEAD OF 3458 02:20:38,000 --> 02:20:39,600 BABY NO FAMILY SHOULD HAVE 3459 02:20:39,600 --> 02:20:41,840 ENDURE LIFELONG DEVASTATION AND 3460 02:20:41,840 --> 02:20:44,120 HEARTBREAK OF LOSING A CHILD. I 3461 02:20:44,120 --> 02:20:45,600 WON'T STOVE DEMANDING CHANGE AND 3462 02:20:45,600 --> 02:20:47,680 APPRECIATE YOU LISTENING TO OUR 3463 02:20:47,680 --> 02:20:49,440 STORIES AND HOPE WE CAN MAKE A 3464 02:20:49,440 --> 02:20:51,440 DIFFERENCE IN CHANGING THE 3465 02:20:51,440 --> 02:20:52,680 OUTCOMES AND CHANGING TRAJECTORY 3466 02:20:52,680 --> 02:20:54,760 OF STILLBIRTHS IN THIS COUNTRY 3467 02:20:54,760 --> 02:20:56,840 AND THANK YOU YOUR TIME. 3468 02:20:56,840 --> 02:21:00,680 >> THANK YOU, KELLY. THANK YOU 3469 02:21:00,680 --> 02:21:03,720 SO MUCH. 3470 02:21:03,720 --> 02:21:09,640 SO, I WILL NOW TURN TO DEB HANY. 3471 02:21:09,640 --> 02:21:16,120 I WILL TRY THIS, DEB. MY HOPE 3472 02:21:16,120 --> 02:21:17,240 IS I HAVE [INDISCERNIBLE]. 3473 02:21:17,240 --> 02:21:18,920 >> THAT WAS ACTUALLY GOOD. NO. 3474 02:21:18,920 --> 02:21:21,280 YOU ACTUALLY GOT THE HARDER ONE 3475 02:21:21,280 --> 02:21:24,120 CORRECT AND SIMPLER ONE WAS A 3476 02:21:24,120 --> 02:21:27,320 LITTLE BIT OFF. STILL VERY 3477 02:21:27,320 --> 02:21:29,000 IMPRESSIVE. THANK YOU. 3478 02:21:29,000 --> 02:21:30,520 >> [LAUGHING]. 3479 02:21:30,520 --> 02:21:32,280 >> THAT ALWAYS CATCHES EVERYONE 3480 02:21:32,280 --> 02:21:34,400 UP. THANKS FOR HAVING US AND 3481 02:21:34,400 --> 02:21:35,760 EVERYONE FOR STILL BEING HERE. 3482 02:21:35,760 --> 02:21:38,320 IT HAS BEEN A LONG DAY. SO, 3483 02:21:38,320 --> 02:21:40,080 YES. SO, THANK YOU FOR THE 3484 02:21:40,080 --> 02:21:43,160 OPPORTUNITY TO SPEAK HERE TODAY 3485 02:21:43,160 --> 02:21:45,880 AND TO STILLBIRTH WORKING GROUP 3486 02:21:45,880 --> 02:21:48,280 FOR HELPING US SHINE A LIGHT ON 3487 02:21:48,280 --> 02:21:49,840 THIS STILLBIRTH CRISIS IN THE US 3488 02:21:49,840 --> 02:21:51,920 AND SORRY WE HAVE TO BE HERE 3489 02:21:51,920 --> 02:21:54,280 HAVING THIS CONVERSATION. 3490 02:21:54,280 --> 02:21:57,800 AGAIN, MY NAME IS DEB AND I'M 3491 02:21:57,800 --> 02:22:00,320 AUTUMN JOY'S MOB AND STILLBIRTH 3492 02:22:00,320 --> 02:22:03,120 ADVOCACY IS NOT WHAT I IMAGINED 3493 02:22:03,120 --> 02:22:08,120 I WOULD DO WITH MY LIFE. JULY 3494 02:22:08,120 --> 02:22:10,760 EIGHTH, 2011 LIFE CHANGED WHEN I 3495 02:22:10,760 --> 02:22:12,680 BROUGHT LIFELESS BABY GIRL INTO 3496 02:22:12,680 --> 02:22:14,800 THIS WORLD. CHANGED ME IN WAYS 3497 02:22:14,800 --> 02:22:18,400 I CAN'T BEGIN TO EXPLAIN AND 3498 02:22:18,400 --> 02:22:20,520 LIFE NEVER BEEN SAME SINCE SPENT 3499 02:22:20,520 --> 02:22:23,680 PAST 11 YEARS -- STILLBORN BABY 3500 02:22:23,680 --> 02:22:25,200 INTO THE WORLD WHICH IS WHY I'M 3501 02:22:25,200 --> 02:22:27,480 HERE TODAY. MY DOCTORS LED ME 3502 02:22:27,480 --> 02:22:29,800 TO BELIEVE LOSING HER WAS AS 3503 02:22:29,800 --> 02:22:31,360 RARE AS BEING STRUCK BY 3504 02:22:31,360 --> 02:22:33,480 LIGHTNING. I BELIEVED THEM. I 3505 02:22:33,480 --> 02:22:34,920 DIDN'T KNOW WHAT A STILLBIRTH 3506 02:22:34,920 --> 02:22:36,720 WAS OR SOMETHING LIKE THIS COULD 3507 02:22:36,720 --> 02:22:38,720 HAPPEN TO ME AND SOON LEARNED 3508 02:22:38,720 --> 02:22:41,680 THAT WASN'T THE CASE AND 3509 02:22:41,680 --> 02:22:43,120 STILLBIRTHED ARE ONE OF MOST 3510 02:22:43,120 --> 02:22:45,160 COMMON ADVERSE PREGNANCY 3511 02:22:45,160 --> 02:22:48,920 OUTCOMES IN US LED TO BELIEVE 3512 02:22:48,920 --> 02:22:50,200 PREGNANCY WILL RESULT IN HEALTHY 3513 02:22:50,200 --> 02:22:53,920 BABY. REALITY IS THAT IS NOT 3514 02:22:53,920 --> 02:22:56,120 TRUE. SINCE AUTUMN DIED OVER 3515 02:22:56,120 --> 02:22:57,320 260,000 BABIES HAVE BEEN 3516 02:22:57,320 --> 02:22:58,520 STILLBORN IN THE COUNTRY. 3517 02:22:58,520 --> 02:23:03,120 NUMBER GETS TO ME. DESPITE 3518 02:23:03,120 --> 02:23:04,120 THESE NUMBERS [INDISCERNIBLE] 3519 02:23:04,120 --> 02:23:06,080 MOST UNDERFUNDED AND 3520 02:23:06,080 --> 02:23:07,880 UNDERSTUDIED PUBLIC HEALTH 3521 02:23:07,880 --> 02:23:10,360 ISSUES TODAY PREGNANCY AND 3522 02:23:10,360 --> 02:23:13,760 POSITIVE BIRTH OUTCOMES WE TAKE 3523 02:23:13,760 --> 02:23:15,120 FOR GRANTED AFTER STILLBIRTH 3524 02:23:15,120 --> 02:23:18,200 MARRIAGES FAIL FAMILIES FALL 3525 02:23:18,200 --> 02:23:21,800 APART FRIENDSHIPS DISSOLVE AND 3526 02:23:21,800 --> 02:23:23,600 CAREERS LOST NEGATIVE IMPACT OF 3527 02:23:23,600 --> 02:23:26,120 STILLBIRTH IN SOCIETY AND STIGMA 3528 02:23:26,120 --> 02:23:28,840 THAT FORCES FAMILIES TO SUFFER 3529 02:23:28,840 --> 02:23:30,160 IN SILENCE AND THAT SAID 3530 02:23:30,160 --> 02:23:32,120 STILLBIRTH IS AN ISSUE WE CAN'T 3531 02:23:32,120 --> 02:23:33,560 SOLVE WITHOUT ACCURATE AND 3532 02:23:33,560 --> 02:23:35,960 TIMELY DATA AND TRUTH IS 3533 02:23:35,960 --> 02:23:37,880 STILLBIRTH IS NOT PRIORITIZED 3534 02:23:37,880 --> 02:23:39,440 FOR TIMELY RELEASE AND WHEN 3535 02:23:39,440 --> 02:23:40,920 AVAILABLE THERE ARE CONCERNS 3536 02:23:40,920 --> 02:23:43,160 ABOUT QUALITY AND EXAMPLE OF 3537 02:23:43,160 --> 02:23:45,560 INITIAL DATA FROM 2020 LIVE 3538 02:23:45,560 --> 02:23:48,080 BIRTHS BECAME AVAILABLE IN MAY 3539 02:23:48,080 --> 02:23:49,560 OF 2021 AND DIDN'T BECOME 3540 02:23:49,560 --> 02:23:51,360 AVAILABLE FOR STILLBIRTHS IN 3541 02:23:51,360 --> 02:23:53,600 AUGUST OF 2022 MAKING ABILITY TO 3542 02:23:53,600 --> 02:23:55,800 MAKE DATA DRIVEN DECISIONS 3543 02:23:55,800 --> 02:23:59,000 PREVENTION VIRTUALLY IMPOSSIBLE. 3544 02:23:59,000 --> 02:24:01,400 ALL IS NOT LOST MADE EFFORTS TO 3545 02:24:01,400 --> 02:24:03,680 IMPROVE LIVE BIRTH DATA CAN DO 3546 02:24:03,680 --> 02:24:05,160 FOR STILLBIRTH. WITH BETTER 3547 02:24:05,160 --> 02:24:07,000 DATA WE CAN HAVE BETTER OUTCOMES 3548 02:24:07,000 --> 02:24:09,240 AND RESEARCH ON STILLBIRTH HAS 3549 02:24:09,240 --> 02:24:11,240 NOT BEEN AFFORDED SAME ATTENTION 3550 02:24:11,240 --> 02:24:13,520 AS OTHER AREAS OF MEDICAL 3551 02:24:13,520 --> 02:24:15,640 RESEARCH AND SOME STUDIES 3552 02:24:15,640 --> 02:24:18,520 IDENTIFIED FACTORS CAUSING 3553 02:24:18,520 --> 02:24:19,760 STILLBIRTHS WE DON'T KNOW CAUSES 3554 02:24:19,760 --> 02:24:23,440 IN MAJORITY OF THEM IN PART LOW 3555 02:24:23,440 --> 02:24:26,720 AUTOPSY RATES LACK OF PROTOCOLS 3556 02:24:26,720 --> 02:24:28,240 FOR IDENTIFYING STILLBIRTHS 3557 02:24:28,240 --> 02:24:32,040 LEADS TO WORKFORCE CONCERNS 3558 02:24:32,040 --> 02:24:33,960 TRAINED PERINATAL PATHOLOGISTS 3559 02:24:33,960 --> 02:24:36,040 IN US TOO FEW TRAINED 3560 02:24:36,040 --> 02:24:39,000 PATHOLOGISTS NOT EVALUATED BY 3561 02:24:39,000 --> 02:24:41,720 AUTOPSY AND IF IT IS AUTOPSY 3562 02:24:41,720 --> 02:24:44,480 LEADS TO INACCURATE FINDINGS AND 3563 02:24:44,480 --> 02:24:46,120 WITHOUT EXAMINATIONS WE ARE 3564 02:24:46,120 --> 02:24:48,320 LIMITED IN UNDERSTANDING WHY SO 3565 02:24:48,320 --> 02:24:51,200 MANY HEALTHY PREGNANCIES RESULT 3566 02:24:51,200 --> 02:24:54,040 IN STILLBIRTH ABOVE LED TO 3567 02:24:54,040 --> 02:24:55,360 CREATION OF STILLBIRTH 3568 02:24:55,360 --> 02:24:57,880 PREVENTION AND EDUCATION FOR 3569 02:24:57,880 --> 02:24:59,920 AUTUMN ACT FOCUSING ON IMPROVING 3570 02:24:59,920 --> 02:25:02,160 DATA COLLECTION AWARENESS AND 3571 02:25:02,160 --> 02:25:03,880 REPORTING INFORMATION AND REMAIN 3572 02:25:03,880 --> 02:25:07,080 HOPEFUL AND OPTIMISTIC WE CAN 3573 02:25:07,080 --> 02:25:08,680 [INDISCERNIBLE] TO 118TH 3574 02:25:08,680 --> 02:25:11,520 CONGRESS THIS YEAR AND PROUD TO 3575 02:25:11,520 --> 02:25:15,280 SAY IT WAS FORMER CONGRESSWOMAN 3576 02:25:15,280 --> 02:25:19,120 THAT WORKED TIRELESSLY TO GAIR 3577 02:25:19,120 --> 02:25:21,040 TEE STILLBIRTH TAVK FORCING WAS 3578 02:25:21,040 --> 02:25:23,200 FUNDED TO BEGIN TO ADDRESS 3579 02:25:23,200 --> 02:25:24,920 STILLBIRTH CRISIS IN US SOONER 3580 02:25:24,920 --> 02:25:26,760 RATHER THAN LATER. ALL I HAVE 3581 02:25:26,760 --> 02:25:28,520 TO SAY IS THANK YOU AGAIN FOR 3582 02:25:28,520 --> 02:25:30,000 THIS OPPORTUNITY AND FOR JOINING 3583 02:25:30,000 --> 02:25:33,440 US TO ENSURE THIS ISSUE IS NO 3584 02:25:33,440 --> 02:25:36,160 LONGER NEGLECTED OR FORGOTTEN. 3585 02:25:36,160 --> 02:25:37,040 THANK YOU. 3586 02:25:37,040 --> 02:25:42,880 >> THANK YOU SO MUCH, DEB. I 3587 02:25:42,880 --> 02:25:43,680 KNOW THAT REPRESENTATIVE 3588 02:25:43,680 --> 02:25:46,400 [INDISCERNIBLE] AND HERRERA 3589 02:25:46,400 --> 02:25:48,880 BUTLER WERE SUCH CHAMPIONS 3590 02:25:48,880 --> 02:25:50,600 AROUND WILL MISS THEM GREATLY IN 3591 02:25:50,600 --> 02:25:53,320 THE NEXT CONGRESS AND THERE WILL 3592 02:25:53,320 --> 02:25:56,120 BE NEW CHAMPIONS WE HOPE TO WORK 3593 02:25:56,120 --> 02:25:58,600 WITH US TO ADVANCE THIS ISSUE. 3594 02:25:58,600 --> 02:26:00,200 THANK YOU FOR RAISING THAT. 3595 02:26:00,200 --> 02:26:04,600 MAY I SEE IF MEGAN -- I WILL TRY 3596 02:26:04,600 --> 02:26:09,080 THIS ONE. OKAT. I'M HOPING 3597 02:26:09,080 --> 02:26:11,600 THAT IS CORRECT. MEGAN, PLEASE 3598 02:26:11,600 --> 02:26:12,560 CORRECT ME. 3599 02:26:12,560 --> 02:26:16,120 >> YOU GOT IT. YUP. HELLO. 3600 02:26:16,120 --> 02:26:17,760 HI, EVERYBODY. I'M JUST PULLING 3601 02:26:17,760 --> 02:26:22,720 UP MY NOTES HERE. ALL RIGHT. 3602 02:26:22,720 --> 02:26:27,320 THANK YOU SO MUCH. I'M MEGAN 3603 02:26:27,320 --> 02:26:30,320 AND PROGRAM DIRECTOR WITH 3604 02:26:30,320 --> 02:26:32,120 HEALTHY BIRTHDAY INK. 3605 02:26:32,120 --> 02:26:34,400 PROGRAM COUNT THE KICKS YOU 3606 02:26:34,400 --> 02:26:36,760 HEARD ABOUT A BIT TODAY. THANK 3607 02:26:36,760 --> 02:26:38,640 YOU FOR ADVOCATES ON HERE 3608 02:26:38,640 --> 02:26:40,000 TALKING TODAY AND THANKS FOR ALL 3609 02:26:40,000 --> 02:26:41,840 BEING PART OF THE CRITICAL 3610 02:26:41,840 --> 02:26:43,200 CONVERSATION ALLOWING OUR VOICES 3611 02:26:43,200 --> 02:26:46,120 TO BE HEARD AND HOPEFULLY TAKE 3612 02:26:46,120 --> 02:26:49,400 WHAT YOU HEAR AND LEARN TODAY 3613 02:26:49,400 --> 02:26:52,120 AND TURN INTO ACTION. YOU HEARD 3614 02:26:52,120 --> 02:26:54,680 JASMINE AND COUPLE OTHER 3615 02:26:54,680 --> 02:26:56,120 ADVOCATES AND AMBASSADORS TALK 3616 02:26:56,120 --> 02:26:58,960 ABOUT COUNT THE KICKS WE WORKED 3617 02:26:58,960 --> 02:27:02,400 TO DECREASE STILLBIRTH RATE IN 3618 02:27:02,400 --> 02:27:06,400 IOWA BY 32% AND 39% OF AFRICA 3619 02:27:06,400 --> 02:27:08,200 AMERICAN HERE IN IOWA AND HOPE 3620 02:27:08,200 --> 02:27:10,640 TO BRING PROGRAM IN ALL 50 3621 02:27:10,640 --> 02:27:13,200 STATES AND REPLICATING SUCCESS 3622 02:27:13,200 --> 02:27:15,800 IN IOWA IN EVERY STATE ACROSS 3623 02:27:15,800 --> 02:27:18,920 THE NATION. WE WILL HAVE 3624 02:27:18,920 --> 02:27:21,920 POTENTIAL TO SAFE 7500 PAPE 3625 02:27:21,920 --> 02:27:24,040 BABIES FROM PREVENTABLE 3626 02:27:24,040 --> 02:27:28,680 STILLBIRTH YOU WON'T HEAR 100 PS 3627 02:27:28,680 --> 02:27:31,440 FORS ON WEBSITE OF BABIES THAT 3628 02:27:31,440 --> 02:27:32,640 HAVE BEEN SAVED AND WE KNOW 3629 02:27:32,640 --> 02:27:34,680 THERE ARE MORE OUT THERE WITH 3630 02:27:34,680 --> 02:27:36,120 COUNTLESS INFORMATION. YOU 3631 02:27:36,120 --> 02:27:38,360 WON'T HEAR HOW IOWA HASN'T HAD 3632 02:27:38,360 --> 02:27:41,360 INCREASE IN C SECTION RATES WITH 3633 02:27:41,360 --> 02:27:44,280 CREATION AND IMPLICATION OF 3634 02:27:44,280 --> 02:27:46,320 COUNT OF THE KICKS AND 3635 02:27:46,320 --> 02:27:49,360 STILLBIRTHS THAT HAPPENED 3636 02:27:49,360 --> 02:27:51,800 23,000 + SILVER STORIES THAT 3637 02:27:51,800 --> 02:27:52,880 TRAGICALLY HAPPEN EVERY YEAR AND 3638 02:27:52,880 --> 02:27:54,840 WON'T HEAR ABOUT ALL MOMS DYING 3639 02:27:54,840 --> 02:27:56,120 AFTER SUFFERING STILLBIRTH AS 3640 02:27:56,120 --> 02:27:57,480 YOU KNOW OR DIDN'T KNOW YOU ARE 3641 02:27:57,480 --> 02:27:59,880 4 TIMES MORE LIKELY TO DIE AFTER 3642 02:27:59,880 --> 02:28:01,880 SUFFERING A STILLBIRTH. 3643 02:28:01,880 --> 02:28:04,000 NOW, YOU WON'T HEAR ALL OF THE 3644 02:28:04,000 --> 02:28:04,480 STORIES TODAY. 3645 02:28:04,480 --> 02:28:07,400 WHAT I HOPE YOU DO HEAR IS THERE 3646 02:28:07,400 --> 02:28:09,320 IS ENOUGH EVIDENCE IN SUPPORT TO 3647 02:28:09,320 --> 02:28:11,560 PUSH FOR MORE FUNDING AND 3648 02:28:11,560 --> 02:28:12,320 SUPPORT FROM YOUR COLLEAGUES 3649 02:28:12,320 --> 02:28:13,720 FROM THE FEDERAL GOVERNMENT AND 3650 02:28:13,720 --> 02:28:15,600 YOU WILL HEAR AND WALK AWAY 3651 02:28:15,600 --> 02:28:17,240 KNOWING THERE ARE PEOPLE AND 3652 02:28:17,240 --> 02:28:19,000 ORGANIZATIONS HERE THAT WANT TO 3653 02:28:19,000 --> 02:28:22,800 FIX THE SYSTEM AND FEM YOU ARES 3654 02:28:22,800 --> 02:28:25,040 ALL ACROSS THE US CONTACT US ALL 3655 02:28:25,040 --> 02:28:27,160 THE TIME WITH STORIES OF LOSS 3656 02:28:27,160 --> 02:28:29,600 ASKING HOW WE GET PROVIDERS TO 3657 02:28:29,600 --> 02:28:31,320 LISTEN. ORGANIZATIONS LIKE A1 3658 02:28:31,320 --> 02:28:32,800 WORKING WITH US HAND IN HAND TO 3659 02:28:32,800 --> 02:28:35,320 GET STANDARD OF CARE MODEL 3660 02:28:35,320 --> 02:28:37,160 CREATED FOR THOSE COMING INTO 3661 02:28:37,160 --> 02:28:38,840 DEPARTMENTS WITH CHANGE IN FETAL 3662 02:28:38,840 --> 02:28:41,920 MOVEMENT AND WHAT TO DO WE ARE 3663 02:28:41,920 --> 02:28:44,000 HOOER WE CAN'T DO THIS ALONE OR 3664 02:28:44,000 --> 02:28:45,840 IN SILOS WE NEED YOU AND YOU 3665 02:28:45,840 --> 02:28:48,080 NEED US. THANK YOU. 3666 02:28:48,080 --> 02:28:51,800 >> MEGAN, THANKS SO MUCH AND 3667 02:28:51,800 --> 02:28:58,760 APPRECIATE YOUR COMMENTS. 3668 02:28:58,760 --> 02:29:01,360 I THINK EMILY PRICE IS NEXT ON 3669 02:29:01,360 --> 02:29:02,720 SPEAKER LIST AND THANK YOU ALL 3670 02:29:02,720 --> 02:29:04,360 FOR CONTINUING TO HOLD IN THIS 3671 02:29:04,360 --> 02:29:07,040 SPACE WITH US AND LISTENING TO 3672 02:29:07,040 --> 02:29:07,680 THESE STORIES. 3673 02:29:07,680 --> 02:29:09,720 WE REALLY DO VERY MUCH 3674 02:29:09,720 --> 02:29:11,440 APPRECIATE THEM. EMILY, ARE YOU 3675 02:29:11,440 --> 02:29:12,040 WITH US? 3676 02:29:12,040 --> 02:29:14,240 >> I AM. THANK YOU FOR YOUR 3677 02:29:14,240 --> 02:29:16,160 TIME. APPRECIATE IT. THANK YOU 3678 02:29:16,160 --> 02:29:17,560 FORALLOWING US TO SPEAK AND BE 3679 02:29:17,560 --> 02:29:20,720 HERE TODAY CEO OF HEALTHY 3680 02:29:20,720 --> 02:29:23,840 BIRTHDAY INC. WORKING ALONGSIDE 3681 02:29:23,840 --> 02:29:26,640 MEGAN AND JASMINE AND SHAWN AND 3682 02:29:26,640 --> 02:29:30,000 MANY OTHERS HERE TODAY CEO OF 3683 02:29:30,000 --> 02:29:32,560 HEALTHY BIRTHDAY INK NON-PROFIT 3684 02:29:32,560 --> 02:29:34,200 IN IOWA STARTING COUNT THE KICKS 3685 02:29:34,200 --> 02:29:36,040 STILLBIRTH PREVENTION PROGRAM. 3686 02:29:36,040 --> 02:29:37,520 NOTHING I SAY NOW WILL BE 3687 02:29:37,520 --> 02:29:39,200 IMPORTANT AS STORIES YOU HAVE 3688 02:29:39,200 --> 02:29:41,840 HEARD FROM FAMILIES ENDURING 3689 02:29:41,840 --> 02:29:44,080 TRAGEDY OF STILLBIRTHS ON CALL 3690 02:29:44,080 --> 02:29:45,840 AND SOMEONE WORKING IN 3691 02:29:45,840 --> 02:29:48,120 STILLBIRTH PREVENTION ENCOUNT 3692 02:29:48,120 --> 02:29:50,200 ERRED IGNORANCE IN THIS COUNTRY 3693 02:29:50,200 --> 02:29:52,640 AND CONVERSATION IN HEAD OF 3694 02:29:52,640 --> 02:29:54,360 MATERNAL CHILD HEALTH IN STATE 3695 02:29:54,360 --> 02:29:56,640 DEPARTMENT HERE IN US SHE ASKED 3696 02:29:56,640 --> 02:29:59,200 DIFFERENCE BETWEEN STILLBIRTH 3697 02:29:59,200 --> 02:30:04,560 AND MISCARRIAGE AND HEAD IN THAT 3698 02:30:04,560 --> 02:30:07,640 DEPARTMENT DIDN'T KNOW DTS 3699 02:30:07,640 --> 02:30:13,360 DIFFERENCE BETWEEN -- MATERNAL 3700 02:30:13,360 --> 02:30:20,920 AND -- STILLBIRTH IS NOT A 3701 02:30:20,920 --> 02:30:24,200 PRIORITY RIGHT NOW. SHE IS 3702 02:30:24,200 --> 02:30:31,560 RIGHT -- 3703 02:30:31,560 --> 02:30:34,800 WE DEEPLY APPRECIATE YOUR TIME 3704 02:30:34,800 --> 02:30:37,520 AND LISTENING TO US YOU HAVE 3705 02:30:37,520 --> 02:30:41,280 POWER TO GET THOUSANDS MORE SAFE 3706 02:30:41,280 --> 02:30:49,640 LY -- THEY WERE VERY CLOSE TO 3707 02:30:49,640 --> 02:30:51,600 LOSING THEIR OWN LIVES AND MEGAN 3708 02:30:51,600 --> 02:30:53,440 MENTIONED RESEARCH SHOWS WHEN 3709 02:30:53,440 --> 02:30:55,880 SOMEONE GIVES BIRTH TO STILLBORN 3710 02:30:55,880 --> 02:30:59,200 BABY THEY ARE 4 TO 5 MORE TIMES 3711 02:30:59,200 --> 02:31:04,120 MORE LIKELY TO LOSE THEIR OWN 3712 02:31:04,120 --> 02:31:05,000 LIFE. STILLBORN EFFORTS EXIST 3713 02:31:05,000 --> 02:31:07,880 WE HAVE OPPORTUNITY TO SAVE MOMS 3714 02:31:07,880 --> 02:31:10,560 TOO. COUNT THE KICKS NOT ONLY 3715 02:31:10,560 --> 02:31:12,560 ALERTS MOMS TO EARLY RED FLAGS 3716 02:31:12,560 --> 02:31:15,640 WITH BABY IN THIRD TRIMESTER BUT 3717 02:31:15,640 --> 02:31:18,080 ALERTED THEM TO OWN HEALTH 3718 02:31:18,080 --> 02:31:21,360 ISSUES DEVELOPING LIKE MATERNAL 3719 02:31:21,360 --> 02:31:25,280 FETAL HEMORRHAGE OR PLACENTAL 3720 02:31:25,280 --> 02:31:27,120 ABRUPGS. MY FRIEND SHAWN COUNT 3721 02:31:27,120 --> 02:31:29,200 THE KICKS ARIZONA AMBASSADOR 3722 02:31:29,200 --> 02:31:31,080 TALKED ABOUT HOW SHE NEARLY DIED 3723 02:31:31,080 --> 02:31:32,960 AFTER DELIVERING HER SON ZACK. 3724 02:31:32,960 --> 02:31:35,200 SHE DIDN'T TELL YOU OUR SONS 3725 02:31:35,200 --> 02:31:37,480 WERE BORN THREE WEEKS APART TO 3726 02:31:37,480 --> 02:31:40,120 THE DAY IN JULY OF 2010. ONLY 3727 02:31:40,120 --> 02:31:41,200 DIFFERENCE I KNEW ABOUT COUNT 3728 02:31:41,200 --> 02:31:43,120 THE KICKS I LIVE IN A STATE 3729 02:31:43,120 --> 02:31:45,440 COUNT THE KICKS WAS CREATED AND 3730 02:31:45,440 --> 02:31:46,840 SPOKE UP WHEN I NOTICED CHANGE 3731 02:31:46,840 --> 02:31:49,560 IN SON'S MOVEMENTS IN 30 WEEKS 3732 02:31:49,560 --> 02:31:51,040 AND DOCTOR TOOK ME VERY 3733 02:31:51,040 --> 02:31:52,640 SERIOUSLY AND KNEW EVERYTHING TO 3734 02:31:52,640 --> 02:31:55,040 DO TO KEEP MY SON SAFE AND 3735 02:31:55,040 --> 02:31:57,720 INSIDE ME AND HE WAS DELIVERED 3736 02:31:57,720 --> 02:32:00,560 EXTREMELY HEALTHY FIRST DAY IN 3737 02:32:00,560 --> 02:32:04,160 4TH WEEK NOT ADMITTED TO NICU. 3738 02:32:04,160 --> 02:32:05,480 ONLY DIFFERENCE BETWEEN OUR 3739 02:32:05,480 --> 02:32:08,120 STORIES IS ONE OF US LIVED IN 3740 02:32:08,120 --> 02:32:10,600 COUNT THE KICKS STATE AND ONE 3741 02:32:10,600 --> 02:32:15,040 DOES NOT WHY DOES AMERICA ROLL 3742 02:32:15,040 --> 02:32:16,120 THE DICE WHO HAS IMPORTANT 3743 02:32:16,120 --> 02:32:17,000 STILLBIRTH INFORMATION AND WHO 3744 02:32:17,000 --> 02:32:23,240 DOES NOT YOU HAVE POWER TO SAVE 3745 02:32:23,240 --> 02:32:25,760 THIS LET'S STOP LEAVING BABY'S 3746 02:32:25,760 --> 02:32:27,800 LIVES UP TO CHANCE. WE DON'T 3747 02:32:27,800 --> 02:32:30,000 CARE WHO TAKES CREDIT WE CAN 3748 02:32:30,000 --> 02:32:32,800 SAVE LIVES RIGHT NOW MY SON AND 3749 02:32:32,800 --> 02:32:34,800 THOUSANDS OF OTHERS ARE LIVING 3750 02:32:34,800 --> 02:32:36,480 PROOF. THANK YOU FORYOUR TIME. 3751 02:32:36,480 --> 02:32:41,200 >> THANK YOU EMILY AND THANKS SO 3752 02:32:41,200 --> 02:32:43,760 MUCH. 3753 02:32:43,760 --> 02:32:51,520 I WILL CLOSE AND ASK TAMARA 3754 02:32:51,520 --> 02:32:54,800 NAPERSACK, ARE YOU WITH US 3755 02:32:54,800 --> 02:33:04,920 TODAY? 3756 02:33:14,640 --> 02:33:17,600 WE ARE RUNNING BEHIND. IT IS 3757 02:33:17,600 --> 02:33:18,720 POSSIBLE. I APOLOGIZE. 3758 02:33:18,720 --> 02:33:20,080 >> SHE DROPPED OFF. 3759 02:33:20,080 --> 02:33:30,240 >> I WILL REACH OUT TO HER. 3760 02:33:30,240 --> 02:33:32,480 FIRST, I WANT TO RECOGNIZE AND 3761 02:33:32,480 --> 02:33:33,520 ACKNOWLEDGE THE FACT THAT MANY 3762 02:33:33,520 --> 02:33:36,000 OF YOU HAVE BEEN WITH US THIS 3763 02:33:36,000 --> 02:33:37,520 WHOLE TIME. 3764 02:33:37,520 --> 02:33:41,480 I WANT TO THANK YOU SINCERELY. 3765 02:33:41,480 --> 02:33:46,960 THE PAIN AND GRIEF ARE SO VERY 3766 02:33:46,960 --> 02:33:49,200 REAL. AS A MOM AND AS A FRIEND 3767 02:33:49,200 --> 02:33:51,320 TO INDIVIDUALS WHO HAVE 3768 02:33:51,320 --> 02:33:52,840 DELIVERED STILLBORN BABIES, I 3769 02:33:52,840 --> 02:33:55,760 JUST WANT TO HONOR THE POWER AND 3770 02:33:55,760 --> 02:34:00,120 THE PAIN THAT YOU HAVE SHARED. 3771 02:34:00,120 --> 02:34:03,520 IT IS AN INCREDIBLY DIFFICULT 3772 02:34:03,520 --> 02:34:06,520 THING TO RELIVE TRAUMA AND 3773 02:34:06,520 --> 02:34:08,080 INCREDIBLY DIFFICULT THING TO 3774 02:34:08,080 --> 02:34:11,400 SHARE IT PUBLICLY AND DIFFICULT 3775 02:34:11,400 --> 02:34:13,280 THING TO SHARE SOMETHING THAT 3776 02:34:13,280 --> 02:34:16,920 CAUSED PAIN TO YOURSELVES AND 3777 02:34:16,920 --> 02:34:21,440 FAMILY AND MUSIC IN SOCIAL AND 3778 02:34:21,440 --> 02:34:22,360 FASCINATINGLY AMAZING WAY WE 3779 02:34:22,360 --> 02:34:23,880 HAVE HEARD YOU TODAY. WE HAVE 3780 02:34:23,880 --> 02:34:25,440 HEARD THE NEED TO PAY ATTENTION 3781 02:34:25,440 --> 02:34:28,120 TO EQUITY AND TO PAY ATTENTION 3782 02:34:28,120 --> 02:34:30,320 TO THE MENTAL HEALTH OF THE MOMS 3783 02:34:30,320 --> 02:34:33,200 AND FAMILIES WHO HAVE 3784 02:34:33,200 --> 02:34:34,800 EXPERIENCED STILLBIRTH AND PAY 3785 02:34:34,800 --> 02:34:38,200 ATTENTION TO NEEDS FOR AUTOPSY 3786 02:34:38,200 --> 02:34:40,280 AND FETAL AUTOPSY AND PAYING 3787 02:34:40,280 --> 02:34:42,680 ATTENTION TO FETAL MOVEMENT AND 3788 02:34:42,680 --> 02:34:45,400 NEEDS FOR IMAGING AND MEASURING 3789 02:34:45,400 --> 02:34:47,200 THE PLACENTA AND TRYING TO 3790 02:34:47,200 --> 02:34:48,600 DETERMINE HOW TO PREVENT 3791 02:34:48,600 --> 02:34:50,160 STILLBIRTH FOR OTHER FAMILIES 3792 02:34:50,160 --> 02:34:52,120 AND HOW WE NEED DATA FOR 3793 02:34:52,120 --> 02:34:54,000 RESEARCH AND THANK YOU FOR NOT 3794 02:34:54,000 --> 02:34:57,320 ONLY SHARING YOUR STORY BUT YOUR 3795 02:34:57,320 --> 02:34:57,840 KNOWLEDGE. 3796 02:34:57,840 --> 02:34:59,360 WE HOPE THAT AT LEAST WE CAN 3797 02:34:59,360 --> 02:35:04,560 BEGIN TO HONOR YOUR FAMILY'S 3798 02:35:04,560 --> 02:35:06,400 VOICES AND LOSSES AND 3799 02:35:06,400 --> 02:35:08,120 ACKNOWLEDGE THE POWER YOU HAVE 3800 02:35:08,120 --> 02:35:10,920 AS A COMMUNITY AND WE ARE GRATE 3801 02:35:10,920 --> 02:35:12,680 OFFUL FOR EVERYTHING YOU SHARED 3802 02:35:12,680 --> 02:35:13,440 WITH US TODAY. 3803 02:35:13,440 --> 02:35:16,080 WITH THAT, I WOULD LIKE TO ALSO 3804 02:35:16,080 --> 02:35:18,840 SAY THAT MY SINCERE CONDOLENCES 3805 02:35:18,840 --> 02:35:21,000 FOR ALL YOUR LOSSES. 3806 02:35:21,000 --> 02:35:23,760 I CANNOT IMAGINE THE PAIN THAT, 3807 02:35:23,760 --> 02:35:26,080 THAT HAS CAUSED BUT TRULY 3808 02:35:26,080 --> 02:35:28,040 APPRECIATE IT FROM THE BOTTOM OF 3809 02:35:28,040 --> 02:35:29,800 MY HEART. 3810 02:35:29,800 --> 02:35:34,400 WITH THAT, I WILL SAY THAT WE 3811 02:35:34,400 --> 02:35:40,080 WILL CONTINUE TO LISTEN. WE DO 3812 02:35:40,080 --> 02:35:41,280 ALSO STILL HAVE OPPORTUNITY FOR 3813 02:35:41,280 --> 02:35:43,520 SOME THAT MENTIONED A REQUEST 3814 02:35:43,520 --> 02:35:45,840 THAT IS OUT FOR MORE OF AN 3815 02:35:45,840 --> 02:35:47,160 OFFICIAL CHANNEL THAT IS DUE 3816 02:35:47,160 --> 02:35:49,240 TOMORROW. IF YOU HAVE NOT 3817 02:35:49,240 --> 02:35:51,080 SHARED THROUGH THAT, WE WOULD 3818 02:35:51,080 --> 02:35:52,600 REALLY APPRECIATE. WE ALSO 3819 02:35:52,600 --> 02:35:54,200 SHARED FOR THOSE THAT REGISTERED 3820 02:35:54,200 --> 02:35:56,640 IF YOU CAN'T MEET THAT DEADLINE 3821 02:35:56,640 --> 02:36:00,120 IT THAT YOU CAN REACH OUT TO 3822 02:36:00,120 --> 02:36:01,600 NATASHA WILLIAMS FROM 3823 02:36:01,600 --> 02:36:03,840 LEGISLATION AND PUBLIC POLICY 3824 02:36:03,840 --> 02:36:06,160 OFFICE AND WILL SHARE 3825 02:36:06,160 --> 02:36:07,360 PRELIMINARY REPORTS AND 3826 02:36:07,360 --> 02:36:09,880 RECOMMENDATIONS TO JANUARY 4TH, 3827 02:36:09,880 --> 02:36:10,920 2023 ADVISORY COUNCIL MEETING 3828 02:36:10,920 --> 02:36:12,800 AND YOU CAN GO TO THE WEBSITE 3829 02:36:12,800 --> 02:36:15,440 FOR MORE DETAILS ON THAT. I 3830 02:36:15,440 --> 02:36:17,400 WANT TO HOLD YOUR STORY WITH ME 3831 02:36:17,400 --> 02:36:18,760 TODAY. WE WILL CONTINUE TO HOLD 3832 02:36:18,760 --> 02:36:20,680 THEM IN THE WORKING GROUP. 3833 02:36:20,680 --> 02:36:22,600 THANKS SO MUCH ALL OF YOU FOR 3834 02:36:22,600 --> 02:36:24,440 JOINING US. WITH THAT, I THINK 3835 02:36:24,440 --> 02:36:36,720 WE WILL CLOSE.