1 00:00:05,920 --> 00:00:09,040 I'M TRISH POWELL, THE CO-CHAIR 2 00:00:09,040 --> 00:00:11,600 OF THE INTERAGENCY COORDINATING 3 00:00:11,600 --> 00:00:12,120 COMMITTEE ON FETAL ALCOHOL 4 00:00:12,120 --> 00:00:13,160 SPECTRUM DISORDERS. 5 00:00:13,160 --> 00:00:16,520 I WANT TO TAKE THIS OPPORTUNITY 6 00:00:16,520 --> 00:00:17,920 TO WELCOME YOU TO OUR 2023 7 00:00:17,920 --> 00:00:19,480 PUBLIC MEETING, AND TO LET YOU 8 00:00:19,480 --> 00:00:20,800 KNOW THAT WE ARE DELIGHTED THAT 9 00:00:20,800 --> 00:00:23,880 YOU HAVE JOINED US TODAY. 10 00:00:23,880 --> 00:00:26,520 THE ICCFASD HOLDS ONE PUBLIC 11 00:00:26,520 --> 00:00:28,840 MEETING PER YEAR AND ONE TO TWO 12 00:00:28,840 --> 00:00:30,120 EXECUTIVE COMMITTEE MEETINGS. 13 00:00:30,120 --> 00:00:32,080 AND AT THESE ANNUAL PUBLIC 14 00:00:32,080 --> 00:00:34,560 MEETINGS, WE HAVE EACH AGENCY, 15 00:00:34,560 --> 00:00:36,000 EACH FEDERAL AGENCY 16 00:00:36,000 --> 00:00:36,800 REPRESENTATIVE PROVIDE A REPORT 17 00:00:36,800 --> 00:00:41,160 ON THEIR AGENCY FASD-RELATED 18 00:00:41,160 --> 00:00:43,240 ACTIVITIES FROM FY 22. 19 00:00:43,240 --> 00:00:45,760 THE PRESENTATIONS HAVE BEEN 20 00:00:45,760 --> 00:00:47,520 PRERECORDED, BUT AFTER EACH SET 21 00:00:47,520 --> 00:00:49,360 OF PRESENTATIONS, YOU'LL HAVE AN 22 00:00:49,360 --> 00:00:51,240 OPPORTUNITY FOR QUESTION AND 23 00:00:51,240 --> 00:00:51,840 ANSWERS. 24 00:00:51,840 --> 00:00:53,400 THESE PRESENTATIONS HAVE BEEN 25 00:00:53,400 --> 00:00:56,360 DIVIDED INTO MORNING AND 26 00:00:56,360 --> 00:00:56,920 AFTERNOON SESSIONS. 27 00:00:56,920 --> 00:00:59,880 IN ADDITION, THIS YEAR'S INVITED 28 00:00:59,880 --> 00:01:01,280 SPECIAL PANEL WILL FOCUS ON 29 00:01:01,280 --> 00:01:04,000 SERVICES AND SUPPORTS THAT ARE 30 00:01:04,000 --> 00:01:05,440 AVAILABLE AND WORKING FOR PEOPLE 31 00:01:05,440 --> 00:01:07,520 LIVING WITH FASD AND THEIR 32 00:01:07,520 --> 00:01:07,760 FAMILIES. 33 00:01:07,760 --> 00:01:09,480 WE WILL HEAR FROM INVITED GUEST 34 00:01:09,480 --> 00:01:10,800 SPEAKERS ABOUT LESSONS THEY HAVE 35 00:01:10,800 --> 00:01:13,000 LEARNED FROM LIVED EXPERIENCES 36 00:01:13,000 --> 00:01:14,560 AND WHAT MAKES A DIFFERENCE FOR 37 00:01:14,560 --> 00:01:18,040 INDIVIDUALS WITH FASD AND THEIR 38 00:01:18,040 --> 00:01:18,880 FAMILIES. 39 00:01:18,880 --> 00:01:24,120 THE SESSION WILL BE MODERATED BY 40 00:01:24,120 --> 00:01:28,960 JAN LUTKE WHO HAS EXPERIENCES AS 41 00:01:28,960 --> 00:01:32,760 A PARENT OF A CHILD WITH FASD, 42 00:01:32,760 --> 00:01:37,280 THEN DR. CHRISTIE PETRENKO WILL 43 00:01:37,280 --> 00:01:38,600 SHARE WITH YOU HOW HER RESEARCH 44 00:01:38,600 --> 00:01:41,960 HAS BEEN INFLUENCED BY 45 00:01:41,960 --> 00:01:42,880 INTERACTING WITH INDIVIDUALS AND 46 00:01:42,880 --> 00:01:44,160 THEIR FAMILY WITH FASD. 47 00:01:44,160 --> 00:01:45,920 PANEL MEMBERS HAVE EITHER LIVED 48 00:01:45,920 --> 00:01:47,120 EXPERIENCE AS EITHER AN 49 00:01:47,120 --> 00:01:49,960 INDIVIDUAL WITH FASD OR A PARENT 50 00:01:49,960 --> 00:01:51,920 OR CAREGIVER. 51 00:01:51,920 --> 00:01:59,480 OUR PANELISTS INCLUDE NICHOLAS 52 00:01:59,480 --> 00:02:00,760 DAVIS-MAGLIOZZI, KATRINA 53 00:02:00,760 --> 00:02:06,240 GRIFFIN, CATHY. 54 00:02:06,240 --> 00:02:07,680 HOTELLING AND WE'RE SO PLEASED 55 00:02:07,680 --> 00:02:09,000 TO HAVE THEM WITH US TODAY. 56 00:02:09,000 --> 00:02:11,840 THIS WILL THEN BE FOLLOWED BY 57 00:02:11,840 --> 00:02:14,680 PRESENTATION BY THE FASD UNITED 58 00:02:14,680 --> 00:02:18,960 FAMILY NAVIGATOR PROGRAM GROUP. 59 00:02:18,960 --> 00:02:24,280 IT WILL BE MODERATED BY 60 00:02:24,280 --> 00:02:33,080 ELIZABETH DANG. 61 00:02:33,080 --> 00:02:34,680 PRESENTERS BIOGRAPHIES ARE 62 00:02:34,680 --> 00:02:38,920 POSTED ONLINE AT THE ICCFASD 63 00:02:38,920 --> 00:02:39,520 WEBSITE. 64 00:02:39,520 --> 00:02:40,800 THIS IS A HYBRID MEETING THAT 65 00:02:40,800 --> 00:02:44,760 INCLUDES ZOOM AND VIDEOCAST. 66 00:02:44,760 --> 00:02:47,040 ICCFASD MEMBERS AND SPEAKERS 67 00:02:47,040 --> 00:02:48,360 PARTICIPATE BY ZOOM BUT FOR 68 00:02:48,360 --> 00:02:49,800 TECHNICAL REASONS TO ENABLE A 69 00:02:49,800 --> 00:02:51,640 BROADER AUDIENCE TO PARTICIPATE, 70 00:02:51,640 --> 00:02:56,880 ALL OTHER ATTENDEES ARE JOINING 71 00:02:56,880 --> 00:02:58,840 US ON THE NIH VIDEOCAST AT THE 72 00:02:58,840 --> 00:03:00,840 VIDEOCAST WEBSITE. 73 00:03:00,840 --> 00:03:02,800 VIDEOCAST ATTENDEES CAN SUBMIT 74 00:03:02,800 --> 00:03:04,320 QUESTIONS AND COMMENTS BY 75 00:03:04,320 --> 00:03:05,800 COMPLETING AN ONLINE FEEDBACK 76 00:03:05,800 --> 00:03:07,400 FORM LOCATED ON THE VIDEOCAST 77 00:03:07,400 --> 00:03:07,720 MEETING PAGE. 78 00:03:07,720 --> 00:03:09,560 THIS MEETING IS BEING RECORDED 79 00:03:09,560 --> 00:03:11,960 AND WILL BE ARCHIVED AND 80 00:03:11,960 --> 00:03:15,160 AVAILABLE AT THE NIH VIDEOCAST 81 00:03:15,160 --> 00:03:15,720 WEBPAGE. 82 00:03:15,720 --> 00:03:18,120 WE'LL BREAK FOR LUNCH AT RIGHT 83 00:03:18,120 --> 00:03:20,960 AROUND 12:10, AND RECONVENE AT 84 00:03:20,960 --> 00:03:22,480 12:40 FOR OUR AFTERNOON SPECIAL 85 00:03:22,480 --> 00:03:22,800 PANEL. 86 00:03:22,800 --> 00:03:27,080 WE WILL HAVE A FEW BRIEF SHORT 87 00:03:27,080 --> 00:03:27,960 BREAKS DURING THE MEETING. 88 00:03:27,960 --> 00:03:31,120 NOW I WOULD LIKE TO BEGIN BY 89 00:03:31,120 --> 00:03:34,200 HAVING OUR FEDERAL AGENCY REP 90 00:03:34,200 --> 00:03:34,720 REPRESENTATIVES INTRODUCE 91 00:03:34,720 --> 00:03:35,040 THEMSELVES. 92 00:03:35,040 --> 00:03:38,600 WHEN I CALL YOUR AGENCY, PLEASE 93 00:03:38,600 --> 00:03:40,080 UNMUTE, PUT YOUR CAMERA ON AND 94 00:03:40,080 --> 00:03:41,280 INTRODUCE YOURSELF. 95 00:03:41,280 --> 00:03:44,000 SO FIRST WE'LL START WITH THE 96 00:03:44,000 --> 00:03:44,800 ADMINISTRATION FOR CHILDREN AND 97 00:03:44,800 --> 00:03:47,960 FAMILIES. 98 00:03:47,960 --> 00:03:50,480 >> LET'S SEE, IS MY CAMERA ON? 99 00:03:50,480 --> 00:03:51,680 I THINK -- OKAY. 100 00:03:51,680 --> 00:03:53,680 HI, EVERYBODY. 101 00:03:53,680 --> 00:03:54,640 SHARON NEWBURG-RINN. 102 00:03:54,640 --> 00:03:56,280 I'M FROM THE CHILDREN'S BUREAU, 103 00:03:56,280 --> 00:03:57,560 WHICH IS PART OF THE 104 00:03:57,560 --> 00:04:00,440 ADMINISTRATION FOR CHILDREN AND 105 00:04:00,440 --> 00:04:02,360 FAMILIES, ALSO UNDER THE 106 00:04:02,360 --> 00:04:02,960 DEPARTMENT OF HEALTH AND HUMAN 107 00:04:02,960 --> 00:04:05,520 SERVICES. 108 00:04:05,520 --> 00:04:07,200 AND WE DEAL A LOT WITH FOSTER 109 00:04:07,200 --> 00:04:09,560 CARE AND AS MANY OF US KNOW, 110 00:04:09,560 --> 00:04:11,080 THERE ARE A LOT OF CHILDREN IN 111 00:04:11,080 --> 00:04:16,000 FOSTER CARE WHO ARE AFFECTED BY 112 00:04:16,000 --> 00:04:17,240 FASDs, AND A LOT OF THEM ARE 113 00:04:17,240 --> 00:04:17,960 NOT RECOGNIZED. 114 00:04:17,960 --> 00:04:21,440 SO THIS IS OF GREAT INTEREST TO 115 00:04:21,440 --> 00:04:21,600 US. 116 00:04:21,600 --> 00:04:22,760 >> THANKS, SHARON. 117 00:04:22,760 --> 00:04:24,360 NEXT, THE ADMINISTRATION FOR 118 00:04:24,360 --> 00:04:28,360 COMMUNITY LIVING. 119 00:04:28,360 --> 00:04:29,640 >> GOOD MORNING. 120 00:04:29,640 --> 00:04:32,280 MY NAME IS AMANDA REICHARD, AND 121 00:04:32,280 --> 00:04:34,600 I WORK FOR THE ADMINISTRATION 122 00:04:34,600 --> 00:04:35,560 FOR COMMUNITY LIVING, 123 00:04:35,560 --> 00:04:37,560 SPECIFICALLY WITHIN THE RESEARCH 124 00:04:37,560 --> 00:04:40,400 WING OF ACL, WHICH IS NIDILRR OR 125 00:04:40,400 --> 00:04:43,440 THE NATIONAL INSTITUTE ON 126 00:04:43,440 --> 00:04:44,080 DISABILITY, INDEPENDENT LIVING 127 00:04:44,080 --> 00:04:47,920 AND REHABILITATION RESEARCH. 128 00:04:47,920 --> 00:04:50,320 AND WE DEFINITELY ENCOURAGE 129 00:04:50,320 --> 00:04:52,400 APPLICATIONS FOR RESEARCH 130 00:04:52,400 --> 00:04:54,800 RELATED TO FASD WITHIN OUR 131 00:04:54,800 --> 00:04:55,920 AGENCY, AND I'M LOOKING FORWARD 132 00:04:55,920 --> 00:04:57,760 TO HEARING FROM EVERYONE TODAY. 133 00:04:57,760 --> 00:04:59,840 >> THANKS, AMANDA. 134 00:04:59,840 --> 00:05:02,240 NEXT WE HAVE THE OFFICE OF THE 135 00:05:02,240 --> 00:05:03,720 ASSISTANT SECRETARY FOR PLANNING 136 00:05:03,720 --> 00:05:14,000 AND EVALUATION. 137 00:05:16,680 --> 00:05:18,000 KRISTINA, I SEE YOUR NAME. 138 00:05:18,000 --> 00:05:25,760 CAN YOU INTRODUCE YOURSELF? 139 00:05:25,760 --> 00:05:27,080 WE'LL COME BACK TO KRISTINA. 140 00:05:27,080 --> 00:05:28,760 NEXT WE HAVE THE CENTERS FOR 141 00:05:28,760 --> 00:05:34,880 DISEASE CONTROL AND PREVENTION. 142 00:05:34,880 --> 00:05:36,240 >> HI, GOOD MORNING. 143 00:05:36,240 --> 00:05:37,920 MY NAME IS SHIN KIM, AND I'M THE 144 00:05:37,920 --> 00:05:39,560 TEAM LEAD FOR THE PRENATAL 145 00:05:39,560 --> 00:05:40,760 SUBSTANCE EXPOSURE SURVEILLANCE 146 00:05:40,760 --> 00:05:43,400 AND RESEARCH TEAM, AND WE HAVE A 147 00:05:43,400 --> 00:05:45,800 LOT OF DIFFERENT ACTIVITIES 148 00:05:45,800 --> 00:05:47,640 RELATED TO PREGNANCY AND ALCOHOL 149 00:05:47,640 --> 00:05:50,600 AND OTHER SUBSTANCE USE BOTH ON 150 00:05:50,600 --> 00:05:53,840 THE PREVENTION AND THE AFFECTED 151 00:05:53,840 --> 00:05:55,000 INDIVIDUAL SIDE, AND WE ARE 152 00:05:55,000 --> 00:05:59,480 LOOKING FORWARD TO THIS MEETING 153 00:05:59,480 --> 00:06:01,120 AND THE DISCUSSIONS THAT WILL BE 154 00:06:01,120 --> 00:06:01,360 FOLLOWING. 155 00:06:01,360 --> 00:06:04,720 THANK YOU. 156 00:06:04,720 --> 00:06:06,000 >> THANKS, SHIN. 157 00:06:06,000 --> 00:06:07,560 NEXT WE HAVE THE CENTERS FOR 158 00:06:07,560 --> 00:06:13,240 MEDICARE AND MEDICAID SERVICES. 159 00:06:13,240 --> 00:06:19,800 >> HI, I'M CAITLIN CROSS-BARNET, 160 00:06:19,800 --> 00:06:22,200 CMS, TESTS MODELS OF CARE AND 161 00:06:22,200 --> 00:06:27,360 OBVIOUSLY CMS IS A MAJOR COVER 162 00:06:27,360 --> 00:06:30,880 OF MANY AMERICANS, WE COVER 40% 163 00:06:30,880 --> 00:06:32,120 OF ALL PREGNANCIES IN THE UNITED 164 00:06:32,120 --> 00:06:33,600 STATES AND MANY, MANY, MANY 165 00:06:33,600 --> 00:06:35,880 CHILDREN THROUGH MEDICAID AND 166 00:06:35,880 --> 00:06:36,560 CHP PROGRAMS. 167 00:06:36,560 --> 00:06:37,840 WE'RE VERY EXCITED TO BE HERE 168 00:06:37,840 --> 00:06:38,960 TODAY AND SHARE SOME OF WHAT 169 00:06:38,960 --> 00:06:39,520 WE'VE BEEN DOING. 170 00:06:39,520 --> 00:06:41,000 >> GREAT, THANKS, CAITLIN. 171 00:06:41,000 --> 00:06:45,400 NEXT, THE INDIAN HEALTH SERVICE. 172 00:06:45,400 --> 00:06:47,240 >> GOOD MORNING, EVERYBODY. 173 00:06:47,240 --> 00:06:48,520 CAN YOU GUYS HEAR ME? 174 00:06:48,520 --> 00:06:49,400 >> WE CAN, THANK YOU. 175 00:06:49,400 --> 00:06:50,520 >> HI. 176 00:06:50,520 --> 00:06:54,600 THIS IS JB KINLACHEENY, 177 00:06:54,600 --> 00:06:55,640 CURRENTLY SERVING AS THE ALCOHOL 178 00:06:55,640 --> 00:06:57,440 AND SUBSTANCE ABUSE BRANCH 179 00:06:57,440 --> 00:06:59,480 NATIONAL LEAD FOR IHS. 180 00:06:59,480 --> 00:07:04,440 I'M SITTING IN AS AN ALTERNATE 181 00:07:04,440 --> 00:07:08,320 TODAY FOR DR. TINA PETTARA-LAU, 182 00:07:08,320 --> 00:07:09,760 CURRENTLY ON TRAVEL TODAY, BUT 183 00:07:09,760 --> 00:07:12,320 THE INDIAN HEALTH SERVICE 184 00:07:12,320 --> 00:07:14,600 CURRENTLY HAS THE MATERNAL 185 00:07:14,600 --> 00:07:16,360 HEALTH CHILD -- MATERNAL CHILD 186 00:07:16,360 --> 00:07:20,120 HEALTH LEAD, WHICH IS DR. LAU, 187 00:07:20,120 --> 00:07:21,480 AND I SERVE AS THE NATIONAL LEAD 188 00:07:21,480 --> 00:07:23,680 FOR THE ALCOHOL AND SUBSTANCE 189 00:07:23,680 --> 00:07:24,480 ABUSE BRANCH, SO TOGETHER 190 00:07:24,480 --> 00:07:25,640 THERE'S QUITE A FEW ACTIVITIES 191 00:07:25,640 --> 00:07:27,720 THAT ARE HAPPENING WITHIN IHS, 192 00:07:27,720 --> 00:07:28,840 SPECIFICALLY FOCUSING ON 193 00:07:28,840 --> 00:07:30,680 PROVIDING DIRECT CARE FOR 194 00:07:30,680 --> 00:07:32,080 AMERICAN INDIAN AND ALASKA 195 00:07:32,080 --> 00:07:33,560 NATIVES THROUGHOUT THE COUNTRY. 196 00:07:33,560 --> 00:07:35,360 THANK YOU, LOOK FORWARD TO THE 197 00:07:35,360 --> 00:07:36,160 DISCUSSIONS TODAY. 198 00:07:36,160 --> 00:07:38,120 >> THANKS, JB, AND THANKS FOR 199 00:07:38,120 --> 00:07:39,200 JOINING US TODAY. 200 00:07:39,200 --> 00:07:40,640 THE HEALTH RESOURCES AND 201 00:07:40,640 --> 00:07:44,160 SERVICES ADMINISTRATION. 202 00:07:44,160 --> 00:07:45,640 >> HI, GOOD MORNING, EVERYONE. 203 00:07:45,640 --> 00:07:49,160 MY NAME IS DAWN LEVINSON. 204 00:07:49,160 --> 00:07:51,240 I'M WITH HRSA'S MATERNAL CHILD 205 00:07:51,240 --> 00:07:52,640 AND HEALTH BUREAU, I'M THE 206 00:07:52,640 --> 00:07:53,680 DEPUTY DIRECTOR IN OUR DIVISION 207 00:07:53,680 --> 00:07:56,480 OF HEALTHY START AND PERINATAL 208 00:07:56,480 --> 00:07:58,600 SERVICES, IN WHICH OUR FASD 209 00:07:58,600 --> 00:08:03,600 INVESTMENT RESIDES. 210 00:08:03,600 --> 00:08:04,880 OUR MISSION IS TO IMPROVE THE 211 00:08:04,880 --> 00:08:06,680 HEALTH AND WELL-BEING OF OUR 212 00:08:06,680 --> 00:08:08,480 NATION'S MOTHERS, CHILDREN AND 213 00:08:08,480 --> 00:08:10,280 FAMILIES, AND SO LATER THIS 214 00:08:10,280 --> 00:08:13,440 MORNING I WILL BE SHARING SOME 215 00:08:13,440 --> 00:08:15,720 UPDATES FROM OUR FASD PROVIDER 216 00:08:15,720 --> 00:08:16,360 TRAINING PROGRAM. 217 00:08:16,360 --> 00:08:17,400 THANK YOU. 218 00:08:17,400 --> 00:08:19,160 >> THANKS, DAWN. 219 00:08:19,160 --> 00:08:22,080 NEXT WE HAVE THE SUBSTANCE ABUSE 220 00:08:22,080 --> 00:08:22,960 AND MENTAL HEALTH SERVICES 221 00:08:22,960 --> 00:08:25,200 ADMINISTRATION. 222 00:08:25,200 --> 00:08:26,800 >> I'M ON MUTE. 223 00:08:26,800 --> 00:08:27,600 I CAN'T -- 224 00:08:27,600 --> 00:08:29,600 >> WE CAN HEAR YOU. 225 00:08:29,600 --> 00:08:31,720 >> MY VIDEO IS MUTED. 226 00:08:31,720 --> 00:08:33,360 I DON'T KNOW WHY. 227 00:08:33,360 --> 00:08:35,240 ANYHOW, GOOD MORNING. 228 00:08:35,240 --> 00:08:36,760 I'M JON DUNBAR-COOPER FROM 229 00:08:36,760 --> 00:08:37,160 SAMHSA. 230 00:08:37,160 --> 00:08:38,480 WE PROVIDE SUBSTANCE ABUSE 231 00:08:38,480 --> 00:08:39,920 PREVENTION AND TREATMENT 232 00:08:39,920 --> 00:08:42,000 SERVICES AS WELL AS MENTAL 233 00:08:42,000 --> 00:08:44,080 DISORDERS FOR ADOLESCENTS AND 234 00:08:44,080 --> 00:08:46,480 ADULTS, AND I WILL BE SHARING 235 00:08:46,480 --> 00:08:49,960 WITH YOU DIFFERENT PROGRAMS THAT 236 00:08:49,960 --> 00:08:51,320 SAMHSA IS DOING RECENTLY IN THE 237 00:08:51,320 --> 00:08:52,160 LAST YEAR AND THE YEAR BEFORE. 238 00:08:52,160 --> 00:08:53,360 THANK YOU. 239 00:08:53,360 --> 00:08:55,280 YOI LOOK FORWARD TO. 240 00:08:55,280 --> 00:08:56,200 >> THANK YOU, JON. 241 00:08:56,200 --> 00:08:58,040 NEXT WE HAVE THE NATIONAL 242 00:08:58,040 --> 00:08:59,280 INSTITUTE ON ALCOHOL ABUSE AND 243 00:08:59,280 --> 00:09:01,000 ALCOHOLISM. 244 00:09:01,000 --> 00:09:02,240 >> GOOD MORNING, EVERYONE. 245 00:09:02,240 --> 00:09:03,960 MY NAME IS BILL DUNTY. 246 00:09:03,960 --> 00:09:05,200 I'M A PROGRAM OFFICER IN THE 247 00:09:05,200 --> 00:09:06,840 DIVISION OF METABOLISM AND 248 00:09:06,840 --> 00:09:07,360 HEALTH EFFECTS. 249 00:09:07,360 --> 00:09:10,200 AND I ALSO SERVE AS OUR 250 00:09:10,200 --> 00:09:11,280 INSTITUTE'S FASD RESEARCH 251 00:09:11,280 --> 00:09:12,760 COORDINATOR. 252 00:09:12,760 --> 00:09:16,320 >> THANKS, BILL. 253 00:09:16,320 --> 00:09:19,080 WE ALSO NOW HAVE THE EUNICE 254 00:09:19,080 --> 00:09:20,120 KENNEDY SHRIVER NATIONAL 255 00:09:20,120 --> 00:09:21,200 INSTITUTE OF CHILD HEALTH AND 256 00:09:21,200 --> 00:09:31,400 HUMAN DEVELOPMENT. 257 00:09:31,400 --> 00:09:33,800 WE'LL COME BACK TO THEM. 258 00:09:33,800 --> 00:09:35,920 NEXT THE NATIONAL INSTITUTE OF 259 00:09:35,920 --> 00:09:37,960 MENTAL HEALTH. 260 00:09:37,960 --> 00:09:38,720 >> GOOD MORNING. 261 00:09:38,720 --> 00:09:41,760 MY NAME IS JULIA ZEHR, PROGRAM 262 00:09:41,760 --> 00:09:43,520 OFFICER AND BRANCH CHIEF AT THE 263 00:09:43,520 --> 00:09:44,240 NATIONAL INSTITUTE OF MENTAL 264 00:09:44,240 --> 00:09:44,720 HEALTH. 265 00:09:44,720 --> 00:09:46,080 I'M ALSO SERVING AS AN ALTERNATE 266 00:09:46,080 --> 00:09:50,400 TODAY AND MY BRANCH WORKS WITH 267 00:09:50,400 --> 00:09:51,920 DEVELOPMENTAL RISK AND 268 00:09:51,920 --> 00:09:53,480 RESILIENCE ACROSS CHILDREN AND 269 00:09:53,480 --> 00:09:54,000 ADOLESCENTS. 270 00:09:54,000 --> 00:09:55,000 LOOKING FORWARD TO THIS. 271 00:09:55,000 --> 00:09:55,280 THANK YOU. 272 00:09:55,280 --> 00:09:56,880 >> THANKS FOR JOINING US, JULIA. 273 00:09:56,880 --> 00:09:58,280 AND I BELIEVE WE DON'T HAVE 274 00:09:58,280 --> 00:09:59,600 ANYBODY ON TODAY FROM THE 275 00:09:59,600 --> 00:10:01,880 NATIONAL INSTITUTE ON DRUG 276 00:10:01,880 --> 00:10:03,760 ABUSE, IS THAT CORRECT? 277 00:10:03,760 --> 00:10:04,480 OKAY. 278 00:10:04,480 --> 00:10:06,480 HEARING NONE, AND LET ME JUST 279 00:10:06,480 --> 00:10:09,440 COME BACK TO SEE IF KRISTINA CAN 280 00:10:09,440 --> 00:10:10,680 INTRODUCE HERSELF FROM THE 281 00:10:10,680 --> 00:10:11,960 OFFICE OF THE ASSISTANT 282 00:10:11,960 --> 00:10:13,520 SECRETARY FOR PLANNING AND 283 00:10:13,520 --> 00:10:14,040 EVALUATION? 284 00:10:14,040 --> 00:10:19,280 >> GOOD MORNING. 285 00:10:19,280 --> 00:10:21,480 AS TRISH INTRODUCED ME, I WORK 286 00:10:21,480 --> 00:10:23,240 WITHIN THE OFFICE OF THE 287 00:10:23,240 --> 00:10:24,800 ASSISTANT SECRETARY OF PLANNING 288 00:10:24,800 --> 00:10:26,840 AND EVALUATION. 289 00:10:26,840 --> 00:10:31,840 WE LEAD POLICY DEVELOPMENT AND 290 00:10:31,840 --> 00:10:34,040 ADVISE THE SECRETARY ON POLICY 291 00:10:34,040 --> 00:10:35,760 IN A WIDE RANGE OF AREAS, 292 00:10:35,760 --> 00:10:41,400 INCLUDING SUBSTANCE ABUSE. 293 00:10:41,400 --> 00:10:42,800 POLICY SUPPORT AND RESEARCH. 294 00:10:42,800 --> 00:10:45,120 WITHIN THAT TEAM, PRENATAL 295 00:10:45,120 --> 00:10:46,520 SUBSTANCE EXPOSURES AND ALCOHOL 296 00:10:46,520 --> 00:10:48,400 EXPOSURES. 297 00:10:48,400 --> 00:10:50,040 SO I LOOK FORWARD TO TALK TO YOU 298 00:10:50,040 --> 00:10:51,600 TODAY MORE ABOUT OUR WORK IN 299 00:10:51,600 --> 00:10:51,880 THIS AREA. 300 00:10:51,880 --> 00:10:53,080 THANK YOU. 301 00:10:53,080 --> 00:10:54,840 >> THANK YOU, KRISTINA. 302 00:10:54,840 --> 00:10:56,400 AND I JUST WANT TO INTRODUCE FOR 303 00:10:56,400 --> 00:11:00,520 THOSE OF YOU WHO DON'T KNOW HER 304 00:11:00,520 --> 00:11:04,800 THE EXECUTIVE SECRETARY FOR THE 305 00:11:04,800 --> 00:11:05,560 ICCFASD, TATIANA BALACHOVA, WHO 306 00:11:05,560 --> 00:11:06,960 DOES ALL THE HARD WORK OF 307 00:11:06,960 --> 00:11:11,000 PUTTING THESE MEETINGS TOGETHER, 308 00:11:11,000 --> 00:11:13,200 AND REALLY TAKING CARE OF 309 00:11:13,200 --> 00:11:14,080 RUNNING THIS COMMITTEE. 310 00:11:14,080 --> 00:11:15,960 SO WITH THAT, I'D LIKE TO TURN 311 00:11:15,960 --> 00:11:17,040 IT OVER TO TATIANA. 312 00:11:17,040 --> 00:11:18,400 THANK YOU, AGAIN, TO EVERYONE 313 00:11:18,400 --> 00:11:19,440 FOR JOINING US. 314 00:11:19,440 --> 00:11:20,640 I THINK WE HAVE A REALLY 315 00:11:20,640 --> 00:11:21,520 INTERESTING MEETING FOR YOU. 316 00:11:21,520 --> 00:11:22,720 I HOPE YOU CAN STAY FOR THE 317 00:11:22,720 --> 00:11:23,280 WHOLE THING. 318 00:11:23,280 --> 00:11:25,480 IF NOT, PLEASE WATCH THE 319 00:11:25,480 --> 00:11:26,240 VIDEOCAST OF THE PARTS YOU'RE 320 00:11:26,240 --> 00:11:28,520 NOT ABLE TO JOIN US FOR. 321 00:11:28,520 --> 00:11:30,080 THANKS VERY MUCH. 322 00:11:30,080 --> 00:11:30,320 TATIANA? 323 00:11:30,320 --> 00:11:36,760 >> THANK YOU, TRISH. 324 00:11:36,760 --> 00:11:37,280 WELCOME, EVERYBODY. 325 00:11:37,280 --> 00:11:39,880 I JUST WANTED TO ALSO MENTION 326 00:11:39,880 --> 00:11:45,840 THAT I THINK TRACY KING IS HERE 327 00:11:45,840 --> 00:11:47,800 FROM NICHD, IF TRACY WANTS TO 328 00:11:47,800 --> 00:11:49,640 INTRODUCE HERSELF. 329 00:11:49,640 --> 00:11:51,800 >> I APOLOGIZE. 330 00:11:51,800 --> 00:11:54,360 CAN YOU ALL HEAR ME? 331 00:11:54,360 --> 00:11:55,240 I'M TRACY KING. 332 00:11:55,240 --> 00:11:57,720 I'M A MEDICAL OFFICER IN THE 333 00:11:57,720 --> 00:11:59,440 INTELLECTUAL AND DEVELOPMENTAL 334 00:11:59,440 --> 00:12:00,360 DISABILITIES BRANCH AT NICHD. 335 00:12:00,360 --> 00:12:02,080 AND I'M REALLY GLAD TO BE HERE. 336 00:12:02,080 --> 00:12:03,080 >> THANK YOU, TRACY. 337 00:12:03,080 --> 00:12:05,920 MY NAME IS TATIANA BALACHOVA, AS 338 00:12:05,920 --> 00:12:09,520 I HAVE BEEN INTRODUCED ALREADY. 339 00:12:09,520 --> 00:12:10,720 ALSO PROGRAM OFFICIAL IN THE 340 00:12:10,720 --> 00:12:14,480 DIVISION OF EPIDEMIOLOGY AND 341 00:12:14,480 --> 00:12:16,560 PREVENTION RESEARCH AT NIAAA AND 342 00:12:16,560 --> 00:12:17,640 THANK YOU, EVERYBODY, FOR 343 00:12:17,640 --> 00:12:18,520 JOINING US. 344 00:12:18,520 --> 00:12:19,280 WELCOME TO THIS MEETING TODAY. 345 00:12:19,280 --> 00:12:22,640 I LOOK FORWARD TO AN INTERESTING 346 00:12:22,640 --> 00:12:24,320 AND PRODUCTIVE MEETING. 347 00:12:24,320 --> 00:12:26,920 SO WITH THAT, I WILL BEGIN MY 348 00:12:26,920 --> 00:12:29,120 PRESENTATION TO GIVE BRIEF 349 00:12:29,120 --> 00:12:32,200 INTRODUCTION TO ICCFASD. 350 00:12:32,200 --> 00:12:33,280 >> GOOD MORNING. 351 00:12:33,280 --> 00:12:36,120 MY NAME IS TATIANA BALACHOVA. 352 00:12:36,120 --> 00:12:38,960 AS I INTRODUCED MYSELF, I AM A 353 00:12:38,960 --> 00:12:40,400 CLINICAL PSYCHOLOGIST AND 354 00:12:40,400 --> 00:12:41,720 SCIENTIFIC COORDINATOR AND 355 00:12:41,720 --> 00:12:46,640 EXECUTIVE SECRETARY OF THE 356 00:12:46,640 --> 00:12:47,080 ICCFASD, INTERAGENCY 357 00:12:47,080 --> 00:12:47,720 COORDINATING COMMITTEE ON FETAL 358 00:12:47,720 --> 00:12:49,160 ALCOHOL SPECTRUM DISORDERS. 359 00:12:49,160 --> 00:12:51,440 I WILL PROVIDE TODAY A BRIEF 360 00:12:51,440 --> 00:12:57,040 INTRODUCTION TO THE ICCFASD. 361 00:12:57,040 --> 00:12:59,440 ICCFASD IS A COMMITTEE TO 362 00:12:59,440 --> 00:13:00,640 IMPROVE COMMUNICATION AND 363 00:13:00,640 --> 00:13:01,720 COOPERATION BETWEEN FEDERAL 364 00:13:01,720 --> 00:13:02,680 AGENCIES. 365 00:13:02,680 --> 00:13:05,520 AGENCIES THAT ADDRESS ISSUES 366 00:13:05,520 --> 00:13:07,480 RELATED TO FASD AND PREVENTION. 367 00:13:07,480 --> 00:13:10,720 WE KNOW ALCOHOL USE DURING 368 00:13:10,720 --> 00:13:13,000 PREGNANCY INCREASES 369 00:13:13,000 --> 00:13:14,520 COMPLICATIONS SUCH AS 370 00:13:14,520 --> 00:13:22,560 MISCARRIAGE AND OTHER PROGRAMS. 371 00:13:22,560 --> 00:13:24,200 ONE TO 5% OF SCHOOL AGED 372 00:13:24,200 --> 00:13:25,120 CHILDREN ARE AFFECTED IN THE 373 00:13:25,120 --> 00:13:28,840 UNITED STATES. 374 00:13:28,840 --> 00:13:30,840 FASD ARE LIFELONG CONDITIONS 375 00:13:30,840 --> 00:13:31,920 THAT AFFECT MANY PEOPLE AND 376 00:13:31,920 --> 00:13:36,320 FAMILIES IN THIS COUNTRY. 377 00:13:36,320 --> 00:13:38,320 THE PROGRAM WAS RECOGNIZED BY 378 00:13:38,320 --> 00:13:39,280 THE UNITED STATES CONGRESS 379 00:13:39,280 --> 00:13:40,680 ALMOST 30 YEARS AGO, WHEN THE 380 00:13:40,680 --> 00:13:44,280 CONGRESSMAN DATED THE COMMIT EYE 381 00:13:44,280 --> 00:13:50,800 OF THE INSTITUTE OF MEDICINE TO 382 00:13:50,800 --> 00:13:55,480 STUDY FETAL ALCOHOL SYNDROME. 383 00:13:55,480 --> 00:13:56,360 THE 1996 REPORT RECOMMENDED TO 384 00:13:56,360 --> 00:13:58,840 ESTABLISH AN ENTITY COMPRISED OF 385 00:13:58,840 --> 00:13:59,960 REPRESENTATIVES FROM RELEVANT 386 00:13:59,960 --> 00:14:02,120 FEDERAL AGENCIES AND LED BY 387 00:14:02,120 --> 00:14:03,240 NIAAA TO COORDINATE NATIONAL 388 00:14:03,240 --> 00:14:05,840 EFFORTS. 389 00:14:05,840 --> 00:14:09,320 SINCE THEN, ICCFASD HAS BEEN 390 00:14:09,320 --> 00:14:14,080 SPONSORED BY NIAAA. 391 00:14:14,080 --> 00:14:15,680 OUR CURRENT CHAIR IS DR. TRISH 392 00:14:15,680 --> 00:14:18,440 POWELL, DEPUTY DIRECTOR OF 393 00:14:18,440 --> 00:14:18,840 NIAAA. 394 00:14:18,840 --> 00:14:20,680 WE HAVE MANY DIFFERENT GROUPS IN 395 00:14:20,680 --> 00:14:23,440 THE FEDERAL GOVERNMENT 396 00:14:23,440 --> 00:14:24,120 PARTICIPATE IN ICCFASD. 397 00:14:24,120 --> 00:14:26,080 THE MAJORITY OF MEMBERS HAVE 398 00:14:26,080 --> 00:14:27,960 BEEN FROM DEPARTMENT OF HEALTH 399 00:14:27,960 --> 00:14:31,960 AND HUMAN SERVICES. 400 00:14:31,960 --> 00:14:33,080 AGENCIES AND COMMITTEES ARE 401 00:14:33,080 --> 00:14:34,720 HIGHLIGHTED ON THIS SLIDE. 402 00:14:34,720 --> 00:14:38,080 EACH OF THE AGENCIES IS ASSIGNED 403 00:14:38,080 --> 00:14:39,640 A REPRESENTATIVE TO ICCFASD AND 404 00:14:39,640 --> 00:14:41,040 DURING OUR MEETING TODAY, EACH 405 00:14:41,040 --> 00:14:43,360 MEMBER WILL GIVE AN UPDATE ON 406 00:14:43,360 --> 00:14:45,080 THE AGENCY-RELATED ACTIVITIES 407 00:14:45,080 --> 00:14:48,600 COMPLETED IN 2022. 408 00:14:48,600 --> 00:14:50,920 THE AGENCY'S WORK IN DIFFERENT 409 00:14:50,920 --> 00:14:58,680 AREAS RELATED TO FASD I -- 410 00:14:58,680 --> 00:14:59,560 COMPLEXITY OF PROBLEMS AND 411 00:14:59,560 --> 00:15:01,200 SOLUTIONS THAT NEEDED TO IMPROVE 412 00:15:01,200 --> 00:15:02,600 LIVES OF CHILDREN AND ADULTS 413 00:15:02,600 --> 00:15:06,400 LIVING WITH FASD, AND FOR 414 00:15:06,400 --> 00:15:09,400 PREVENTION OF DISORDERS. 415 00:15:09,400 --> 00:15:10,640 ICCFASD MEMBERS WORK TOGETHER TO 416 00:15:10,640 --> 00:15:11,680 SHARE IDEAS, REPORT ACTIVITIES 417 00:15:11,680 --> 00:15:13,000 TO OTHER MEMBERS, AND TO THE 418 00:15:13,000 --> 00:15:13,880 PUBLIC. 419 00:15:13,880 --> 00:15:16,000 AND TO CONSULT AND COLLABORATE 420 00:15:16,000 --> 00:15:19,760 ON PROGRAM DEVELOPMENT AND OTHER 421 00:15:19,760 --> 00:15:21,480 TASKS. 422 00:15:21,480 --> 00:15:25,360 AT TIMES, ICCFASD HAS WORKING 423 00:15:25,360 --> 00:15:26,560 GROUPS TO IMPLEMENT SPECIFIC 424 00:15:26,560 --> 00:15:26,760 GOALS. 425 00:15:26,760 --> 00:15:28,120 I WILL GIVE ONE EXAMPLE. 426 00:15:28,120 --> 00:15:31,480 IT IS CURRENTLY ACTIVE WORKING 427 00:15:31,480 --> 00:15:33,760 GROUP ON SCREENING AND BRIEF 428 00:15:33,760 --> 00:15:36,440 INTERVENTION AND REFERRAL FOR 429 00:15:36,440 --> 00:15:37,720 TREATMENT FOR PREGNANT AND 430 00:15:37,720 --> 00:15:38,480 POSTPARTUM PEOPLE. 431 00:15:38,480 --> 00:15:40,640 THIS GROUP WAS CREATED IN 2021. 432 00:15:40,640 --> 00:15:42,400 OBJECTIVES INCLUDED ON THE 433 00:15:42,400 --> 00:15:42,760 SLIDE. 434 00:15:42,760 --> 00:15:45,160 YOU CAN SEE THAT THIS 435 00:15:45,160 --> 00:15:48,120 COLLABORATIVE EFFORT IS IN LINE 436 00:15:48,120 --> 00:15:50,640 WITH AREAS TO REDUCE PREVALENCE 437 00:15:50,640 --> 00:15:51,880 OF FASD AMONG CHILDREN IN THE 438 00:15:51,880 --> 00:15:54,120 UNITED STATES. 439 00:15:54,120 --> 00:15:55,520 WE HAVE STRONG REPRESENTATION 440 00:15:55,520 --> 00:16:00,120 FROM FEDERAL AGENCIES ENGAGED IN 441 00:16:00,120 --> 00:16:01,120 SCREENING AND BRIEF INTERVENTION 442 00:16:01,120 --> 00:16:01,920 SERVICES ON THIS GROUP. 443 00:16:01,920 --> 00:16:03,880 THIS WORKING GROUP IS COVERED BY 444 00:16:03,880 --> 00:16:07,240 CDC AND NIAAA REPRESENTATIVES. 445 00:16:07,240 --> 00:16:08,240 MORE INFORMATION ABOUT THIS 446 00:16:08,240 --> 00:16:09,760 WORKING GROUP AND OTHER WORKING 447 00:16:09,760 --> 00:16:14,360 GROUPS INCLUDED ON THE ICCFASD 448 00:16:14,360 --> 00:16:15,200 WEBPAGES. 449 00:16:15,200 --> 00:16:17,000 I ENCOURAGE YOU TO VISIT OUR 450 00:16:17,000 --> 00:16:20,240 WEBPAGES TO LEARN MORE ABOUT 451 00:16:20,240 --> 00:16:20,920 ICCFASD. 452 00:16:20,920 --> 00:16:22,360 WE APPRECIATE YOUR PARTICIPATION 453 00:16:22,360 --> 00:16:25,400 IN THE MEETING TODAY, AND LOOK 454 00:16:25,400 --> 00:16:27,480 FORWARD TO YOUR QUESTIONS AND 455 00:16:27,480 --> 00:16:28,880 COMMENTS AND YOUR PARTICIPATION 456 00:16:28,880 --> 00:16:31,320 IN OUR DISCUSSIONS. 457 00:16:31,320 --> 00:16:32,320 THANK YOU. 458 00:16:32,320 --> 00:16:33,920 MY CONTACT INFORMATION IS 459 00:16:33,920 --> 00:16:36,120 INCLUDED ON THE SLIDE. 460 00:16:36,120 --> 00:16:37,640 ON THE WEBSITE, YOU CAN FIND 461 00:16:37,640 --> 00:16:39,080 EACH AGENCY REPRESENTATIVE NAME 462 00:16:39,080 --> 00:16:40,400 AND CONTACT INFORMATION. 463 00:16:40,400 --> 00:16:41,160 PLEASE CONTACT US. 464 00:16:41,160 --> 00:16:45,520 WE WOULD LIKE TO HEAR FROM YOU. 465 00:16:45,520 --> 00:16:47,800 WE'LL CONTINUE OUR MEETING WITH 466 00:16:47,800 --> 00:16:49,240 AGENCIES' REPORTS OF ACTIVITIES 467 00:16:49,240 --> 00:16:54,200 FROM 2022. 468 00:16:54,200 --> 00:16:55,400 SEE THE AGENDA FOR ORDER OF 469 00:16:55,400 --> 00:16:55,720 PRESENTATIONS. 470 00:16:55,720 --> 00:16:57,440 WE WILL HAVE TIME FOR DISCUSSION 471 00:16:57,440 --> 00:17:00,640 AND CONVERSATIONS AFTER EACH 472 00:17:00,640 --> 00:17:01,720 AGENCY'S REPORTS. 473 00:17:01,720 --> 00:17:02,880 VIDEOCAST PARTICIPANTS, YOU CAN 474 00:17:02,880 --> 00:17:03,800 SUBMIT YOUR QUESTIONS AND 475 00:17:03,800 --> 00:17:05,800 COMMENTS BY COMPLETING ONLINE 476 00:17:05,800 --> 00:17:07,320 FEEDBACK FORM ON THE MEETING 477 00:17:07,320 --> 00:17:07,800 PAGE. 478 00:17:07,800 --> 00:17:09,800 IT LOOKS LIKE THIS BOX ON MY 479 00:17:09,800 --> 00:17:12,200 SLIDE. 480 00:17:12,200 --> 00:17:14,360 DR. BILL DUNTY AND I WILL 481 00:17:14,360 --> 00:17:15,840 RECEIVE YOUR SUBMISSION AND WE 482 00:17:15,840 --> 00:17:19,640 WILL BRING THEM TO THE 483 00:17:19,640 --> 00:17:19,960 DISCUSSION. 484 00:17:19,960 --> 00:17:21,080 WITH THAT, I'D LIKE TO TURN OVER 485 00:17:21,080 --> 00:17:22,600 TO THE ADMINISTRATION FOR 486 00:17:22,600 --> 00:17:30,280 CHILDREN AND FAMILIES. 487 00:17:30,280 --> 00:17:32,640 >> HI, EVERYONE. 488 00:17:32,640 --> 00:17:34,600 I'M SHARON NEWBURG-RINN OF THE 489 00:17:34,600 --> 00:17:35,560 CHILDREN'S BUREAU, WHICH IS PART 490 00:17:35,560 --> 00:17:37,320 OF THE ADMINISTRATION FOR 491 00:17:37,320 --> 00:17:39,880 CHILDREN AND FAMILIES, AND I 492 00:17:39,880 --> 00:17:47,240 REPRESENT THEM ON THE 493 00:17:47,240 --> 00:17:47,760 INTERAGENCY COORDINATING 494 00:17:47,760 --> 00:17:48,280 COMMITTEE ON FETAL ALCOHOL 495 00:17:48,280 --> 00:17:48,720 SPECTRUM DISORDERS. 496 00:17:48,720 --> 00:17:49,800 SO I AM HERE IN WASHINGTON BUT I 497 00:17:49,800 --> 00:17:53,000 ALSO WANT TO JUST MENTION THAT 498 00:17:53,000 --> 00:17:55,000 THIS IS NOT JUST A PROJECT OF 499 00:17:55,000 --> 00:17:57,360 THE CHILDREN'S BUREAU BUT WE 500 00:17:57,360 --> 00:18:00,520 ALSO DO THIS IN COLLABORATION 501 00:18:00,520 --> 00:18:03,240 WITH JACQUELINE BERTRAND OF THE 502 00:18:03,240 --> 00:18:04,320 CENTERS FOR DISEASE CONTROL AND 503 00:18:04,320 --> 00:18:14,800 PREVENTION DOWN IN ATLANTA. 504 00:18:15,240 --> 00:18:16,720 SO I JUST HAVE FIVE SLIDES FOR 505 00:18:16,720 --> 00:18:22,440 YOU TODAY. 506 00:18:22,440 --> 00:18:23,920 I HOPE THIS ISN'T GOING TO BE 507 00:18:23,920 --> 00:18:24,800 TOO TAXING. 508 00:18:24,800 --> 00:18:26,880 THIS IS A LIST OF THINGS WE'RE 509 00:18:26,880 --> 00:18:28,080 DOING, JUST EXPLAINING A LITTLE 510 00:18:28,080 --> 00:18:28,600 BIT ABOUT IT. 511 00:18:28,600 --> 00:18:31,360 ONE THING I DO IS I REPRESENT 512 00:18:31,360 --> 00:18:33,880 ACF ON THE WHITE HOUSE OFFICE ON 513 00:18:33,880 --> 00:18:37,160 NATIONAL DRUG CONTROL POLICY. 514 00:18:37,160 --> 00:18:41,320 AND THAT'S WITH STEVEN PATRICK, 515 00:18:41,320 --> 00:18:43,840 WHO'S A DOCTOR AT VANDERBILT 516 00:18:43,840 --> 00:18:47,480 UNIVERSITY. 517 00:18:47,480 --> 00:18:48,440 AND ONE OF THE THINGS THAT HE 518 00:18:48,440 --> 00:18:50,840 DID IS HE REQUESTED FROM THIS 519 00:18:50,840 --> 00:18:54,480 GROUP RECOMMENDATIONS THAT COULD 520 00:18:54,480 --> 00:18:58,600 BE HELPFUL FOR THE WHITE HOUSE 521 00:18:58,600 --> 00:19:00,440 AND HE HAD TWO CRITERIA FOR 522 00:19:00,440 --> 00:19:01,880 THAT, WHICH I THOUGHT WERE 523 00:19:01,880 --> 00:19:02,400 ACTUALLY VERY GOOD. 524 00:19:02,400 --> 00:19:03,640 HE SAID FIRST HE WANTED THEM TO 525 00:19:03,640 --> 00:19:09,760 HAVE A POSITIVE IMPACT ON 526 00:19:09,760 --> 00:19:13,080 PRENATAL EXPOSURES, AND HE ALSO 527 00:19:13,080 --> 00:19:14,320 WANTED TO HAVE IT NOT REQUIRE 528 00:19:14,320 --> 00:19:16,880 ANY ADDED FUNDS, NUMBER ONE, AND 529 00:19:16,880 --> 00:19:20,040 NO NEW ADDED LAWS. 530 00:19:20,040 --> 00:19:21,520 I THINK THOSE ARE ACTUALLY TWO 531 00:19:21,520 --> 00:19:22,760 GOOD THINGS FOR US ALL TO KEEP 532 00:19:22,760 --> 00:19:25,800 IN MIND, BECAUSE TO THE DEGREE 533 00:19:25,800 --> 00:19:27,560 THAT WE'RE ABLE TO DO THAT SORT 534 00:19:27,560 --> 00:19:30,320 OF THING TO MAKE AN IMPACT 535 00:19:30,320 --> 00:19:33,920 WITHOUT HAVING A HUGE EFFORT GO 536 00:19:33,920 --> 00:19:36,320 INTO FINDING THE MONEY AND 537 00:19:36,320 --> 00:19:40,160 MAKING NEW LAWS, I THINK WE'RE 538 00:19:40,160 --> 00:19:43,880 FAR AHEAD FR OF THE GAME. 539 00:19:43,880 --> 00:19:45,600 WE CAN DO AN AWFUL LOT OF THINGS 540 00:19:45,600 --> 00:19:46,920 IF YOU HAVE THE FUNDS AND YOU 541 00:19:46,920 --> 00:19:48,680 HAVE NEW LAWS, BUT WHAT IF YOU 542 00:19:48,680 --> 00:19:52,120 DON'T, WHICH IS SOMETIMES A MORE 543 00:19:52,120 --> 00:19:53,920 REALISTIC PLACE TO BE. 544 00:19:53,920 --> 00:19:56,040 SO OUR RECOMMENDATION FROM MY 545 00:19:56,040 --> 00:19:58,880 GROUP WAS THAT WE DO A 546 00:19:58,880 --> 00:20:00,520 MEMORANDUM. 547 00:20:00,520 --> 00:20:02,920 AND IT WOULD BE TO THE ACF 548 00:20:02,920 --> 00:20:05,840 REGIONAL OFFICES, AND TO THE 549 00:20:05,840 --> 00:20:06,400 STATES. 550 00:20:06,400 --> 00:20:08,200 AND IT WOULD MAKE THESE POINTS 551 00:20:08,200 --> 00:20:10,440 THAT I HAVE LISTED ON THE 552 00:20:10,440 --> 00:20:12,240 SCREEN. 553 00:20:12,240 --> 00:20:14,400 FIRST, THAT FASDs ARE 554 00:20:14,400 --> 00:20:15,840 IMPORTANT AND PREVENTABLE 555 00:20:15,840 --> 00:20:17,560 DISORDERS, AND IDENTIFYING THEM 556 00:20:17,560 --> 00:20:19,640 IS CRITICAL WHEN CHILDREN COME 557 00:20:19,640 --> 00:20:21,080 INTO CONTACT WITH THE CHILD 558 00:20:21,080 --> 00:20:22,800 WELFARE SYSTEM, SO THAT THEY AND 559 00:20:22,800 --> 00:20:25,240 THEIR FAMILIES CAN RECEIVE 560 00:20:25,240 --> 00:20:29,280 SERVICES. 561 00:20:29,280 --> 00:20:32,360 ALSO AN IDENTIFICATION STRATEGY 562 00:20:32,360 --> 00:20:34,840 MUST AVOID MAKING THE PARENTS 563 00:20:34,840 --> 00:20:36,040 FEARFUL THAT SOMEBODY IS GOING 564 00:20:36,040 --> 00:20:38,160 TO SCOOP THEIR CHILDREN UP FROM 565 00:20:38,160 --> 00:20:39,800 FOSTER CARE -- FROM THEIR HOME 566 00:20:39,800 --> 00:20:44,640 AND PUT THEM INTO FOSTER CARE. 567 00:20:44,640 --> 00:20:46,440 AND THERE IS RESEARCH THAT SHOWS 568 00:20:46,440 --> 00:20:48,840 THAT WHEN PARENTS ARE AFRAID FOR 569 00:20:48,840 --> 00:20:51,280 THAT SORT OF REASON, THEY'RE NOT 570 00:20:51,280 --> 00:20:52,680 GOING TO SEEK HELP. 571 00:20:52,680 --> 00:20:56,640 SO THAT'S A VERY CRITICAL POINT. 572 00:20:56,640 --> 00:20:58,360 AND I HAVE ONE ADDED NOTE THAT I 573 00:20:58,360 --> 00:20:59,560 WANT TO MAKE HERE. 574 00:20:59,560 --> 00:21:01,720 THIS IS NOT SOMETHING THAT -- OR 575 00:21:01,720 --> 00:21:05,160 MAYBE I DID SAY IT WHEN IT WAS I 576 00:21:05,160 --> 00:21:07,760 WAS IN THAT GROUP WITH STEVEN 577 00:21:07,760 --> 00:21:08,560 PATRICK. 578 00:21:08,560 --> 00:21:10,840 SOME PEOPLE, ESPECIALLY IN 579 00:21:10,840 --> 00:21:14,440 CONGRESS, OR OUTSIDE, MAY SEE 580 00:21:14,440 --> 00:21:17,840 THIS AS AN OPPORTUNITY TO SAY, 581 00:21:17,840 --> 00:21:19,480 WELL, GEE, YOU'RE NOT GOING TO 582 00:21:19,480 --> 00:21:21,440 HAVE AS MANY CHILDREN IN FOSTER 583 00:21:21,440 --> 00:21:21,880 CARE? 584 00:21:21,880 --> 00:21:23,880 IF THAT'S THE CASE, THEN YOU 585 00:21:23,880 --> 00:21:25,400 DON'T NEED AS MUCH MONEY. 586 00:21:25,400 --> 00:21:28,120 AND WE CAN LOWER THE AMOUNT OF 587 00:21:28,120 --> 00:21:30,080 PUBLIC FUNDS, WE CAN CUT THOSE 588 00:21:30,080 --> 00:21:31,040 FUNDS. 589 00:21:31,040 --> 00:21:33,040 NO, WE DON'T WANT TO CUT THE 590 00:21:33,040 --> 00:21:33,560 FUNDS. 591 00:21:33,560 --> 00:21:36,520 BECAUSE WE ACTUALLY NEED FUNDS 592 00:21:36,520 --> 00:21:39,000 TO DO THE SERVICES THAT THE 593 00:21:39,000 --> 00:21:43,080 CHILDREN AND FAMILIES NEED TO 594 00:21:43,080 --> 00:21:44,760 REMAIN SAFELY IN THEIR HOMES. 595 00:21:44,760 --> 00:21:46,200 SO THE CHILDREN'S BUREAU 596 00:21:46,200 --> 00:21:48,080 LEADERSHIP AGREED TO THIS IDEA 597 00:21:48,080 --> 00:21:49,560 AND CONCEPT TO DO THIS SORT OF A 598 00:21:49,560 --> 00:21:50,000 MEMORANDUM. 599 00:21:50,000 --> 00:21:51,200 IT'S NOT -- IT DOESN'T HAVE THE 600 00:21:51,200 --> 00:21:55,000 FORCE OF LAW, BUT IT'S STILL 601 00:21:55,000 --> 00:21:59,400 SOMETHING THAT WE CAN DO AND 602 00:21:59,400 --> 00:22:01,120 IT'S NOT GOING TO COST MONEY OR 603 00:22:01,120 --> 00:22:01,800 REQUIRE EXTRA FUNDS. 604 00:22:01,800 --> 00:22:08,040 SO WE'RE WORKING ON THAT. 605 00:22:08,040 --> 00:22:11,360 MY SECOND MAJOR POINT IS THAT 606 00:22:11,360 --> 00:22:12,760 WHAT WE'RE DOING NOW IS WE'RE 607 00:22:12,760 --> 00:22:13,960 CONTINUING A COLLABORATION THAT 608 00:22:13,960 --> 00:22:16,480 WE'VE HAD FOR SOME TIME NOW WITH 609 00:22:16,480 --> 00:22:17,440 THE CHILD WELFARE LEAGUE OF 610 00:22:17,440 --> 00:22:17,880 AMERICA. 611 00:22:17,880 --> 00:22:20,800 AND THAT'S VERY IMPORTANT 612 00:22:20,800 --> 00:22:22,880 BECAUSE WE ARE ALL ABOUT CHILD 613 00:22:22,880 --> 00:22:23,800 WELFARE AT THE CHILDREN'S 614 00:22:23,800 --> 00:22:24,320 BUREAU. 615 00:22:24,320 --> 00:22:28,040 SO WE'RE PLANNING A SPECIAL 616 00:22:28,040 --> 00:22:30,040 ISSUE ON THE TOPIC OF CHILDREN 617 00:22:30,040 --> 00:22:31,480 WHO ARE PRENATALLY EXPOSED TO 618 00:22:31,480 --> 00:22:32,520 ALCOHOL AND OTHER DRUGS, AND 619 00:22:32,520 --> 00:22:34,840 WE'RE MAKING IT THAT BROAD 620 00:22:34,840 --> 00:22:36,560 BECAUSE WE DON'T WANT TO JUST 621 00:22:36,560 --> 00:22:40,320 NARROW IT DOWN TO ALCOHOL, EVEN 622 00:22:40,320 --> 00:22:41,280 THOUGH MAYBE EVERYBODY AT THIS 623 00:22:41,280 --> 00:22:42,600 MEETING MAY BE PARTICULARLY 624 00:22:42,600 --> 00:22:43,720 INTERESTED IN THE ALCOHOL, BUT 625 00:22:43,720 --> 00:22:45,920 WE WANT TO MAKE IT BROAD ENOUGH 626 00:22:45,920 --> 00:22:50,480 AND ACTUALLY I TRY TO PULL OTHER 627 00:22:50,480 --> 00:22:54,000 PEOPLE IN BY TALKING IN GENERAL 628 00:22:54,000 --> 00:22:55,280 ABOUT DRUGS AND NOT JUST 629 00:22:55,280 --> 00:22:58,880 ALCOHOL. 630 00:22:58,880 --> 00:23:00,320 SO THERE'S GOING TO BE A SPECIAL 631 00:23:00,320 --> 00:23:03,400 ISSUE OF A JOURNAL ON THE TOPIC 632 00:23:03,400 --> 00:23:06,120 OF THESE PRENATALLY EXPOSED 633 00:23:06,120 --> 00:23:07,960 CHILDREN, AND WE'RE GOING TO 634 00:23:07,960 --> 00:23:09,400 HAVE A LOT -- WE HAVE RECEIVED A 635 00:23:09,400 --> 00:23:13,120 LOT OF PAPERS ON THIS TOPIC AND 636 00:23:13,120 --> 00:23:14,880 THEY HAVE BEEN REVIEWED. 637 00:23:14,880 --> 00:23:17,520 AND THERE'S ALSO GOING TO BE A 638 00:23:17,520 --> 00:23:20,560 SPECIAL SECTION AT THE BEGINNING 639 00:23:20,560 --> 00:23:22,680 OF THIS DOCUMENT, THE BEGINNING 640 00:23:22,680 --> 00:23:25,240 OF THE SPECIAL ISSUE, THAT WILL 641 00:23:25,240 --> 00:23:27,000 HAVE COMMENTS BY THE CHILD 642 00:23:27,000 --> 00:23:28,440 WELFARE LEAGUE OF AMERICA 643 00:23:28,440 --> 00:23:29,520 LEADERSHIP, AND BY THE 644 00:23:29,520 --> 00:23:31,400 CHILDREN'S BUREAU LEADERSHIP. 645 00:23:31,400 --> 00:23:33,640 AND THIS PUBLICATION IS EXPECTED 646 00:23:33,640 --> 00:23:40,120 IN 2024. 647 00:23:40,120 --> 00:23:42,240 WE'RE ALSO -- AND THIS IS 648 00:23:42,240 --> 00:23:43,280 PROBABLY -- REALLY MAYBE I 649 00:23:43,280 --> 00:23:44,920 SHOULD HAVE STARTED OUT WITH 650 00:23:44,920 --> 00:23:46,800 THIS, THE CONTINUING PROJECT, 651 00:23:46,800 --> 00:23:47,920 THE BIG PROJECT THAT WE'RE 652 00:23:47,920 --> 00:23:49,200 WORKING ON, THE CHILDREN'S 653 00:23:49,200 --> 00:23:51,520 BUREAU AND ACF AND THE CDC ARE 654 00:23:51,520 --> 00:23:53,040 WORKING ON A FIVE-YEAR 655 00:23:53,040 --> 00:23:54,920 COLLABORATIVE RESEARCH PROJECT 656 00:23:54,920 --> 00:23:59,800 ON FASDs IN THE CHILD WELFARE 657 00:23:59,800 --> 00:24:00,800 CONTEXT. 658 00:24:00,800 --> 00:24:02,120 I'M AT THE CHILDREN'S BUREAU AND 659 00:24:02,120 --> 00:24:05,640 I'M THE OVERALL PROJECT OFFICER 660 00:24:05,640 --> 00:24:06,720 FROM THE CDC, AND REMEMBER I 661 00:24:06,720 --> 00:24:08,040 TOLD YOU WE WERE COLLABORATING 662 00:24:08,040 --> 00:24:11,280 WITH THE CDC, THEY'RE PROVIDING 663 00:24:11,280 --> 00:24:15,040 SUPPLEMENTAL FUNDING. 664 00:24:15,040 --> 00:24:18,080 AND FOR THE CDC PROJECT LEAD, 665 00:24:18,080 --> 00:24:23,440 THAT IS DR. JACQUELYN BERTRAND. 666 00:24:23,440 --> 00:24:24,760 NOW OUR CURRENT WORK, WHAT WE'RE 667 00:24:24,760 --> 00:24:25,880 DOING ON THIS PROJECT, IS THAT 668 00:24:25,880 --> 00:24:28,720 OUR CONTRACTOR, JAMES BELL 669 00:24:28,720 --> 00:24:29,480 ASSOCIATES, AND THE CONTRACT 670 00:24:29,480 --> 00:24:35,480 LEAD THERE IS DR. ERIN INGOLDSBY 671 00:24:35,480 --> 00:24:38,240 AND ICF ARE NOW RECRUITING 672 00:24:38,240 --> 00:24:39,200 MULTIPLE CHILD WELFARE AGENCIES 673 00:24:39,200 --> 00:24:41,480 ACROSS THE COUNTRY TO BE 674 00:24:41,480 --> 00:24:43,800 INVOLVED IN THE DEVELOPMENT OF A 675 00:24:43,800 --> 00:24:46,720 TOOLKIT AND EVALUATION FOR 676 00:24:46,720 --> 00:24:53,720 USABILITY AND EFFICACY. 677 00:24:53,720 --> 00:24:54,280 OKAY. 678 00:24:54,280 --> 00:24:55,160 CONTINUING HERE WITH MY 679 00:24:55,160 --> 00:24:56,360 INFORMATION ON THAT MAJOR 680 00:24:56,360 --> 00:25:03,160 PROJECT THAT WE'RE DOING, WE'RE 681 00:25:03,160 --> 00:25:04,360 WORKING WITH A TRIBE, THAT'S ONE 682 00:25:04,360 --> 00:25:05,360 OF THE ASPECTS OF THIS WORK THAT 683 00:25:05,360 --> 00:25:06,840 WE'RE DOING, AND THAT'S UNDER 684 00:25:06,840 --> 00:25:08,520 THE LEADERSHIP OF DR. PRISCILLA 685 00:25:08,520 --> 00:25:09,040 DAY. 686 00:25:09,040 --> 00:25:13,240 SHE'S A TRIBAL MEMBER. 687 00:25:13,240 --> 00:25:16,920 SHE IS FROM THE UNIVERSITY OF 688 00:25:16,920 --> 00:25:17,520 MINNESOTA. 689 00:25:17,520 --> 00:25:20,880 AND WE'RE COLLECTING VERY 690 00:25:20,880 --> 00:25:21,520 SIMILAR INFORMATION FROM THAT 691 00:25:21,520 --> 00:25:23,920 TRIBE, BUT IN A WAY THAT IS, WE 692 00:25:23,920 --> 00:25:26,320 HOPE, IN KEEPING WITH THEIR 693 00:25:26,320 --> 00:25:27,720 NEEDS AND THEIR TRADITIONS, 694 00:25:27,720 --> 00:25:29,080 WHICH WE HAVE LEARNED IS A VERY 695 00:25:29,080 --> 00:25:33,880 IMPORTANT THING TO DO. 696 00:25:33,880 --> 00:25:34,960 SO DR. DAY HAS BEEN CRITICAL TO 697 00:25:34,960 --> 00:25:37,600 MAKING THIS WORK WELL. 698 00:25:37,600 --> 00:25:39,160 AND WE'VE BEEN WORKING WITH HER 699 00:25:39,160 --> 00:25:40,360 FOR QUITE A LONG TIME NOW. 700 00:25:40,360 --> 00:25:44,600 WE'RE CONTINUING OUR CLOSE WORK 701 00:25:44,600 --> 00:25:47,360 WITH SOME FASD NATIONAL EXPERTS, 702 00:25:47,360 --> 00:25:54,040 AND EXAMPLES ARE DR. IRA 703 00:25:54,040 --> 00:26:00,240 CHASNOFF, DR. DOUGLAS WAITE, DR. 704 00:26:00,240 --> 00:26:02,000 THEY ARE REVIEWING ALL OUR IDEAS 705 00:26:02,000 --> 00:26:03,520 AND FOR JUST A GENERAL REVIEW. 706 00:26:03,520 --> 00:26:04,520 ANOTHER IMPORTANT ASPECT OF WHAT 707 00:26:04,520 --> 00:26:08,120 WE'RE DOING IS ON THE RACE -- WE 708 00:26:08,120 --> 00:26:10,160 HAVE RACE AND ETHNICITY EXPERTS, 709 00:26:10,160 --> 00:26:15,800 WHICH IS AN EFFORT BEING LED BY 710 00:26:15,800 --> 00:26:17,320 DR. CRYSTAL COLES, AND THEY ARE 711 00:26:17,320 --> 00:26:20,240 NOW REVIEWING OUR PROPOSED 712 00:26:20,240 --> 00:26:23,760 TOOLKIT AND JOURNAL ARTICLES TO 713 00:26:23,760 --> 00:26:26,920 ENSURE THAT THEY MEET THE 714 00:26:26,920 --> 00:26:28,120 HIGHEST STANDARDS REGARDING 715 00:26:28,120 --> 00:26:29,440 THESE ISSUES IN THE CHILD 716 00:26:29,440 --> 00:26:33,040 WELFARE FIELD. 717 00:26:33,040 --> 00:26:34,520 AND THEY ARE ALSO GOING TO BE 718 00:26:34,520 --> 00:26:36,920 DOING AN EQUITY ARTICLE FOR THIS 719 00:26:36,920 --> 00:26:38,760 CHILD WELFARE LEAGUE OF AMERICA 720 00:26:38,760 --> 00:26:42,800 SPECIAL ISSUE. 721 00:26:42,800 --> 00:26:43,960 NOW, THAT'S THE WORK WE'RE DOING 722 00:26:43,960 --> 00:26:46,080 NOW BUT LOOKING TOWARD THE 723 00:26:46,080 --> 00:26:48,040 FUTURE, WE HAVE BEEN MEETING 724 00:26:48,040 --> 00:26:49,800 WITH THE NATIONAL CENTER ON 725 00:26:49,800 --> 00:26:52,520 SUBSTANCE ABUSE IN CHILD 726 00:26:52,520 --> 00:26:53,520 WELFARE, AND THAT'S A 727 00:26:53,520 --> 00:26:55,480 COLLABORATION BETWEEN THE 728 00:26:55,480 --> 00:26:59,680 CHILDREN'S BUREAU AND THE 729 00:26:59,680 --> 00:27:00,640 SUBSTANCE ABUSE AND MENTAL 730 00:27:00,640 --> 00:27:02,960 HEALTH SERVICES ADMINISTRATION, 731 00:27:02,960 --> 00:27:05,520 OR SAMHSA, REGARDING HOW OUR 732 00:27:05,520 --> 00:27:08,080 INFORMATION CAN BE USED IN THE 733 00:27:08,080 --> 00:27:10,560 FUTURE, OR HOW IT CAN BE 734 00:27:10,560 --> 00:27:11,560 DISSEMINATED. 735 00:27:11,560 --> 00:27:13,160 AND ONE THING THAT THIS GROUP 736 00:27:13,160 --> 00:27:15,160 DOES IS IT PROVIDES IN DEPTH 737 00:27:15,160 --> 00:27:20,600 TECHNICAL ASSISTANCE TO STATE 738 00:27:20,600 --> 00:27:22,400 CHILD WELFARE AGENCIES, SO IT'S 739 00:27:22,400 --> 00:27:23,160 ALREADY VERY IMPORTANT IN THE 740 00:27:23,160 --> 00:27:27,440 FIELD. 741 00:27:27,440 --> 00:27:28,640 THE LAST COMMENT THAT I WANT TO 742 00:27:28,640 --> 00:27:33,760 MAKE IS THAT THIS IS THE ONLY 743 00:27:33,760 --> 00:27:36,480 OTHER ACTIVITY THAT I'M AWARE OF 744 00:27:36,480 --> 00:27:40,200 NOW IN ACF THAT'S GOING ON. 745 00:27:40,200 --> 00:27:43,280 HEAD START, WHICH IS UNDER ACF, 746 00:27:43,280 --> 00:27:44,480 HAD A PRESENTATION THAT THEY 747 00:27:44,480 --> 00:27:47,640 DID, IT WAS AN HOUR-LONG 748 00:27:47,640 --> 00:27:49,600 PRESENTATION, IN FY 22, TO 749 00:27:49,600 --> 00:27:52,680 EXPLAIN FASDs TO A LARGE GROUP 750 00:27:52,680 --> 00:27:55,000 OF HEAD START GRANTEES SO THEY 751 00:27:55,000 --> 00:27:56,760 HAD STAFF FROM MANY OF THESE 752 00:27:56,760 --> 00:27:59,480 GRANTEES LISTENING IN. 753 00:27:59,480 --> 00:28:03,200 AND I LISTENED IN TOO, I WASN'T 754 00:28:03,200 --> 00:28:04,480 PART OF THAT PRESENTATION BUT I 755 00:28:04,480 --> 00:28:05,680 DID LISTEN TO IT AND I DID THINK 756 00:28:05,680 --> 00:28:06,680 IT WAS VALUABLE. 757 00:28:06,680 --> 00:28:07,800 AND TO MY KNOWLEDGE, THERE'S 758 00:28:07,800 --> 00:28:09,640 NOBODY ELSE THAT'S DOING WORK ON 759 00:28:09,640 --> 00:28:13,840 THIS IN ACF. 760 00:28:13,840 --> 00:28:15,240 AND THERE'S JUST SOME CONTACT 761 00:28:15,240 --> 00:28:16,120 INFORMATION, AND THAT'S IT. 762 00:28:16,120 --> 00:28:17,400 AND THEN I CAN TAKE QUESTIONS AT 763 00:28:17,400 --> 00:28:18,160 A LATER TIME. 764 00:28:18,160 --> 00:28:20,800 THANK YOU. 765 00:28:20,800 --> 00:28:25,320 BYE. 766 00:28:25,320 --> 00:28:26,280 >> HELLO. 767 00:28:26,280 --> 00:28:28,240 MY NAME IS AMANDA REICHARD, AND 768 00:28:28,240 --> 00:28:30,840 I WORK AT THE ADMINISTRATION FOR 769 00:28:30,840 --> 00:28:31,240 COMMUNITY LIVING. 770 00:28:31,240 --> 00:28:32,960 TODAY I'LL BE TALKING TO YOU 771 00:28:32,960 --> 00:28:34,920 ABOUT ACL-FUNDED PROJECTS THAT 772 00:28:34,920 --> 00:28:36,440 ARE RELATED TO ADDRESSING THE 773 00:28:36,440 --> 00:28:38,680 NEEDS OF PEOPLE WITH 774 00:28:38,680 --> 00:28:39,920 INTELLECTUAL AND DEVELOPMENTAL 775 00:28:39,920 --> 00:28:45,640 DISABILITIES, INCLUDING FASD. 776 00:28:45,640 --> 00:28:47,520 ACL'S MISSION IS TO MAXIMIZE THE 777 00:28:47,520 --> 00:28:48,920 INDEPENDENCE, WELL-BEING, AND 778 00:28:48,920 --> 00:28:50,440 HEALTH OF OLDER ADULTS, PEOPLE 779 00:28:50,440 --> 00:28:52,880 WITH DISABILITIES ACROSS THE 780 00:28:52,880 --> 00:28:54,600 LIFESPAN, AND THEIR FAMILIES AND 781 00:28:54,600 --> 00:28:56,680 CAREGIVERS. 782 00:28:56,680 --> 00:28:59,320 ACL HAS FOUR MAJOR COMPONENTS. 783 00:28:59,320 --> 00:29:01,040 ONE IS NIDILRR, THE NATIONAL 784 00:29:01,040 --> 00:29:03,320 INSTITUTE ON DISABILITY, 785 00:29:03,320 --> 00:29:04,440 INDEPENDENT LIVING, AND 786 00:29:04,440 --> 00:29:06,240 REHABILITATION RESEARCH, AND 787 00:29:06,240 --> 00:29:10,040 THIS IS THE SCIENCE SIDE OF ACL. 788 00:29:10,040 --> 00:29:11,680 THE ADMINISTRATION ON 789 00:29:11,680 --> 00:29:12,760 DISABILITY. 790 00:29:12,760 --> 00:29:14,840 THE CENTER FOR INNOVATION AND 791 00:29:14,840 --> 00:29:15,400 PARTNERSHIP. 792 00:29:15,400 --> 00:29:19,000 AND THE ADMINISTRATION ON AGING. 793 00:29:19,000 --> 00:29:20,800 THE MISSION OF NIDILRR IS TO 794 00:29:20,800 --> 00:29:22,400 GENERATE NEW KNOWLEDGE AND TO 795 00:29:22,400 --> 00:29:23,720 PROMOTE ITS EFFECTIVE USE TO 796 00:29:23,720 --> 00:29:26,120 MAXIMIZE THE FULL INCLUSION AND 797 00:29:26,120 --> 00:29:28,400 INTEGRATION INTO SOCIETY, 798 00:29:28,400 --> 00:29:29,520 EMPLOYMENT, INDEPENDENT LIVING, 799 00:29:29,520 --> 00:29:32,000 FAMILY SUPPORT, AND ECONOMIC AND 800 00:29:32,000 --> 00:29:34,080 SOCIAL SELF-SUFFICIENCY OF 801 00:29:34,080 --> 00:29:35,200 INDIVIDUALS WITH DISABILITIES OF 802 00:29:35,200 --> 00:29:37,480 ALL AGES. 803 00:29:37,480 --> 00:29:39,800 NIDILRR ACHIEVES THIS MISSION BY 804 00:29:39,800 --> 00:29:41,520 INVESTING IN REHABILITATION 805 00:29:41,520 --> 00:29:44,800 RESEARCH THAT IS TIED CLOSELY TO 806 00:29:44,800 --> 00:29:46,880 LONGER TERM OUTCOMES SUCH AS 807 00:29:46,880 --> 00:29:48,080 INDEPENDENCE, COMMUNITY 808 00:29:48,080 --> 00:29:50,600 PARTICIPATION, AND EMPLOYMENT. 809 00:29:50,600 --> 00:29:53,320 NIDILRR UNIQUELY FOCUSES ON THE 810 00:29:53,320 --> 00:29:55,320 WHOLE PERSON WITH A DISABILITY, 811 00:29:55,320 --> 00:29:56,320 WHOSE ABILITY TO FUNCTION AND 812 00:29:56,320 --> 00:29:57,960 QUALITY OF LIFE ARE DEPENDENT ON 813 00:29:57,960 --> 00:30:00,680 THE COMPLEX INTERACTIONS AMONG 814 00:30:00,680 --> 00:30:01,760 PERSONAL, SOCIETAL AND 815 00:30:01,760 --> 00:30:04,080 ENVIRONMENTAL FACTORS. 816 00:30:04,080 --> 00:30:06,680 NIDILRR INCLUDES IN ITS TARGET 817 00:30:06,680 --> 00:30:08,800 POPULATION ALL AGE GROUPS AND 818 00:30:08,800 --> 00:30:11,400 ALL DISABILITY TYPES. 819 00:30:11,400 --> 00:30:14,680 INCLUDING FASD. 820 00:30:14,680 --> 00:30:17,080 I'LL START WITH SOME NEW 821 00:30:17,080 --> 00:30:18,640 RESEARCH GRANTS INTENDED TO 822 00:30:18,640 --> 00:30:19,720 IMPROVE EMPLOYMENT OUTCOMES FOR 823 00:30:19,720 --> 00:30:21,880 PEOPLE WITH INTELLECTUAL AND 824 00:30:21,880 --> 00:30:26,160 DEVELOPMENTAL DISABILITIES. 825 00:30:26,160 --> 00:30:27,080 RESEARCHERS AT CORNELL 826 00:30:27,080 --> 00:30:27,920 UNIVERSITY ARE CONDUCTING THE 827 00:30:27,920 --> 00:30:30,000 WORK FOR THE FIRST EXAMPLE. 828 00:30:30,000 --> 00:30:31,760 THE PURPOSE OF THIS PROJECT IS 829 00:30:31,760 --> 00:30:34,520 TO LEARN HOW THE PUBLIC 830 00:30:34,520 --> 00:30:36,920 VOCATIONAL REHABILITATION OR VR 831 00:30:36,920 --> 00:30:38,080 PROGRAM CAN EFFECTIVELY SERVE 832 00:30:38,080 --> 00:30:40,440 OUT OF SCHOOL YOUTH AGES 16 TO 833 00:30:40,440 --> 00:30:42,160 24 WITH INTELLECTUAL, 834 00:30:42,160 --> 00:30:43,800 DEVELOPMENTAL AND MENTAL HEALTH 835 00:30:43,800 --> 00:30:45,000 DISABILITIES WHO ARE INVOLVED IN 836 00:30:45,000 --> 00:30:47,040 THE JUSTICE AND/OR FOSTER CARE 837 00:30:47,040 --> 00:30:47,920 SYSTEMS. 838 00:30:47,920 --> 00:30:50,360 THIS RESEARCH ALSO EXAMINES 839 00:30:50,360 --> 00:30:51,880 UNIQUE CONSIDERATIONS PERTAINING 840 00:30:51,880 --> 00:30:54,840 TO THE ONGOING COVID-19 PANDEMIC 841 00:30:54,840 --> 00:30:57,040 AND SUBSEQUENT ECONOMIC DOWNTURN 842 00:30:57,040 --> 00:30:58,680 WHICH HAVE CREATED AN EVEN MORE 843 00:30:58,680 --> 00:30:59,880 PRESSING NEED TO ADDRESS THE 844 00:30:59,880 --> 00:31:04,560 SERVICE GAPS FOR THESE YOUTH. 845 00:31:04,560 --> 00:31:05,880 RESEARCHERS AT THE UNIVERSITY OF 846 00:31:05,880 --> 00:31:08,080 KANSAS ARE USING 847 00:31:08,080 --> 00:31:08,760 EMPLOYMENT-RELATED GRANT FUNDS 848 00:31:08,760 --> 00:31:11,680 TO RESEARCH THE FEASIBILITY, 849 00:31:11,680 --> 00:31:13,320 EFFICACY, AND COST-EFFECTIVENESS 850 00:31:13,320 --> 00:31:15,520 OF IMPLEMENTING A CAREER DESIGN 851 00:31:15,520 --> 00:31:17,160 INTERVENTION THAT USES 852 00:31:17,160 --> 00:31:18,680 TELEHEALTH FOR RURAL DWELLING 853 00:31:18,680 --> 00:31:22,280 ADULTS WITH IDD. 854 00:31:22,280 --> 00:31:24,160 THE INTERVENTION USES THE 855 00:31:24,160 --> 00:31:26,320 SELF-DETERMINED CAREER DESIGN 856 00:31:26,320 --> 00:31:28,640 MODEL, AN EVIDENCE-BASED 857 00:31:28,640 --> 00:31:29,920 INTERVENTION DESIGNED FOR PEOPLE 858 00:31:29,920 --> 00:31:31,120 WITH IDD. 859 00:31:31,120 --> 00:31:33,120 RESEARCHERS HAVE DEMONSTRATED 860 00:31:33,120 --> 00:31:35,760 THAT THE SDCDM IS EFFECTIVE IN 861 00:31:35,760 --> 00:31:37,360 PROMOTING SELF-DETERMINATION AND 862 00:31:37,360 --> 00:31:38,560 EMPLOYMENT. 863 00:31:38,560 --> 00:31:42,080 AND THEY WILL BE TRANSLATING 864 00:31:42,080 --> 00:31:45,680 THIS MODEL INTO A VIRTUAL 865 00:31:45,680 --> 00:31:47,880 SETTING. 866 00:31:47,880 --> 00:31:49,840 NEXT I'LL DESCRIBE SOME RESEARCH 867 00:31:49,840 --> 00:31:51,440 GRANTS INTENDED TO IMPROVE 868 00:31:51,440 --> 00:31:53,120 HEALTH AND FUNCTION OUTCOMES FOR 869 00:31:53,120 --> 00:31:55,160 PEOPLE WITH INTELLECTUAL AND 870 00:31:55,160 --> 00:31:58,760 DEVELOPMENTAL DISABILITIES. 871 00:31:58,760 --> 00:32:00,880 THE FIRST HEALTH AND FUNCTION 872 00:32:00,880 --> 00:32:03,360 EXAMPLE CONDUCTED AT THE 873 00:32:03,360 --> 00:32:04,280 VIRGINIA COMMONWEALTH UNIVERSITY 874 00:32:04,280 --> 00:32:05,600 INVOLVES AN EXAMINATION OF THE 875 00:32:05,600 --> 00:32:08,000 IMPACT OF COVID-19 PANDEMIC AND 876 00:32:08,000 --> 00:32:09,680 RELATED POLICY SHIFTS ON PEOPLE 877 00:32:09,680 --> 00:32:11,840 WITH IDD AND THE SERVICES AND 878 00:32:11,840 --> 00:32:13,920 SUPPORTS THEY RELY ON TO LIVE 879 00:32:13,920 --> 00:32:18,000 INDEPENDENTLY IN THE COMMUNITY. 880 00:32:18,000 --> 00:32:20,800 THIS RESEARCH MERGES FOUR MAJOR 881 00:32:20,800 --> 00:32:22,560 DATASETS, EACH OF WHICH PROVIDES 882 00:32:22,560 --> 00:32:23,840 UNIQUE AND IMPORTANT INSIGHT 883 00:32:23,840 --> 00:32:26,480 INTO THE RELATIONSHIP BETWEEN 884 00:32:26,480 --> 00:32:28,840 MEDICAID UTILIZATION, A PERSON'S 885 00:32:28,840 --> 00:32:31,280 SUPPORT NEEDS, AND PERSONAL AND 886 00:32:31,280 --> 00:32:32,400 SYSTEMS LEVEL OUTCOMES FOR 887 00:32:32,400 --> 00:32:35,040 PEOPLE WITH IDD. 888 00:32:35,040 --> 00:32:36,240 THE ULTIMATE AIM OF THIS PROJECT 889 00:32:36,240 --> 00:32:39,280 IS NOT ONLY TO INFORM STATE IDD 890 00:32:39,280 --> 00:32:40,720 SYSTEM ADMINISTRATORS AND 891 00:32:40,720 --> 00:32:42,720 ADVOCATES IN VIRGINIA, BUT TO 892 00:32:42,720 --> 00:32:44,200 PROVIDE A BLUEPRINT FOR OTHER 893 00:32:44,200 --> 00:32:46,960 STATES TO FOLLOW, TO GAIN BETTER 894 00:32:46,960 --> 00:32:48,800 INSIGHT INTO HOW THEIR OWN 895 00:32:48,800 --> 00:32:52,400 MEDICAID SERVICES TRANSLATE TO 896 00:32:52,400 --> 00:32:52,680 OUTCOMES. 897 00:32:52,680 --> 00:32:54,400 AS SUCH, FINDINGS, PROCESSES AND 898 00:32:54,400 --> 00:32:55,920 CODE WILL BE AVAILABLE TO 899 00:32:55,920 --> 00:33:04,240 STAKEHOLDERS IN OTHER STATES. 900 00:33:04,240 --> 00:33:05,160 THE SECOND HEALTH AND FUNCTION 901 00:33:05,160 --> 00:33:08,680 EXAMPLE IS BEING CONDUCTED AT 902 00:33:08,680 --> 00:33:10,480 BRANDEIS UNIVERSITY'S LURIE 903 00:33:10,480 --> 00:33:12,520 INSTITUTE ON DISABILITY POLICY. 904 00:33:12,520 --> 00:33:13,400 THEIR NATIONAL CENTER FOR 905 00:33:13,400 --> 00:33:15,080 DISABILITY AND PREGNANCY 906 00:33:15,080 --> 00:33:17,000 RESEARCH HAS SEVERAL RESEARCH 907 00:33:17,000 --> 00:33:19,880 PROJECTS RELATED TO DISABILITY 908 00:33:19,880 --> 00:33:21,080 AND PREGNANCY. 909 00:33:21,080 --> 00:33:23,000 BECAUSE PEOPLE WITH IDD HAVE A 910 00:33:23,000 --> 00:33:25,560 GREATER LIKELIHOOD OF HAVING 911 00:33:25,560 --> 00:33:26,520 SEVERE MENTAL HEALTH CHALLENGES 912 00:33:26,520 --> 00:33:28,960 COMPARED TO THEIR PEERS WITHOUT 913 00:33:28,960 --> 00:33:29,920 DISABILITIES, ONE OF THEIR 914 00:33:29,920 --> 00:33:32,440 PROJECTS IS ADAPTING AND TESTING 915 00:33:32,440 --> 00:33:40,320 THE RELIABILITY OF THE EDINBURGH 916 00:33:40,320 --> 00:33:41,640 POSTNATAL DEPRESSION SCALE FOR 917 00:33:41,640 --> 00:33:43,280 PEOPLE WITH IDD. 918 00:33:43,280 --> 00:33:45,320 NEXT I'LL DESCRIBE SOME RESEARCH 919 00:33:45,320 --> 00:33:46,760 GRANTS INTENDED TO IMPROVE 920 00:33:46,760 --> 00:33:48,400 COMMUNITY PARTICIPATION FOR 921 00:33:48,400 --> 00:33:50,240 PEOPLE WITH INTELLECTUAL AND 922 00:33:50,240 --> 00:33:55,960 DEVELOPMENTAL DISABILITIES. 923 00:33:55,960 --> 00:33:57,040 THE FIRST COMMUNITY LIVING AND 924 00:33:57,040 --> 00:33:58,400 PARTICIPATION RESEARCH PROJECT 925 00:33:58,400 --> 00:34:00,040 IS BEING CONDUCTED AT GEORGE 926 00:34:00,040 --> 00:34:00,880 MASON UNIVERSITY. 927 00:34:00,880 --> 00:34:02,080 THE ULTIMATE GOAL OF THE PROJECT 928 00:34:02,080 --> 00:34:05,400 IS TO ALLOW NEURODIVERSE 929 00:34:05,400 --> 00:34:07,000 INDIVIDUALS TO ACQUIRE OR 930 00:34:07,000 --> 00:34:09,040 IMPROVE THEIR SELF-REGULATION 931 00:34:09,040 --> 00:34:11,040 SKILLS AND ALLOW ASSISTANCE TO 932 00:34:11,040 --> 00:34:12,600 ALSO GAIN A BETTER UNDERSTANDING 933 00:34:12,600 --> 00:34:15,000 OF THE INTERVENTIONS. 934 00:34:15,000 --> 00:34:16,640 THE PROJECT DEVELOPS AND 935 00:34:16,640 --> 00:34:19,720 EVALUATES AN ASSISTIVE 936 00:34:19,720 --> 00:34:21,000 SMARTWATCH APPLICATION THAT WILL 937 00:34:21,000 --> 00:34:23,120 SUPPORT THE IMPROVEMENT OF 938 00:34:23,120 --> 00:34:24,760 SELF-REGULATION SKILLS FOR 939 00:34:24,760 --> 00:34:27,960 NEURODIVERSE YOUNG ADULTS IN 940 00:34:27,960 --> 00:34:30,120 INDEPENDENT LIVING. 941 00:34:30,120 --> 00:34:33,040 IT ALSO OFFERS DIRECT SUPPORT TO 942 00:34:33,040 --> 00:34:33,760 NEURODIVERSE INDIVIDUALS AND 943 00:34:33,760 --> 00:34:36,640 THEIR ASSISTANTS. 944 00:34:36,640 --> 00:34:40,040 AND THIS OPTION GIVES A LESS 945 00:34:40,040 --> 00:34:43,040 OBTRUSIVE APPROACH TO 946 00:34:43,040 --> 00:34:47,080 SELF-REGULATION. 947 00:34:47,080 --> 00:34:49,360 ANOTHER COMMUNITY LIVING AND 948 00:34:49,360 --> 00:34:50,280 PARTICIPATION PROJECT CONDUCTED 949 00:34:50,280 --> 00:34:52,960 AT THE UNIVERSITY OF ILLINOIS AT 950 00:34:52,960 --> 00:34:55,120 CHICAGO IS DEVELOPING AND 951 00:34:55,120 --> 00:34:57,320 RIGOROUSLY TESTING THE EFFICACY 952 00:34:57,320 --> 00:34:59,320 OF AN ONLINE VERSION OF AN 953 00:34:59,320 --> 00:35:00,280 EVIDENCE-BASED FUTURE PLANNING 954 00:35:00,280 --> 00:35:02,360 INTERVENTION. 955 00:35:02,360 --> 00:35:04,800 THE PRIMARY OUTCOMES OF THIS 956 00:35:04,800 --> 00:35:06,960 PROJECT ARE TO INCREASE 957 00:35:06,960 --> 00:35:09,040 PARTICIPATION IN FUTURE 958 00:35:09,040 --> 00:35:10,600 PLANNING, TO INCREASE 959 00:35:10,600 --> 00:35:12,320 SELF-DETERMINATION AND DAILY 960 00:35:12,320 --> 00:35:15,400 CHOICE-MAKING OF THE PERSON WITH 961 00:35:15,400 --> 00:35:17,560 IDD, AND TO DECREASE FAMILY 962 00:35:17,560 --> 00:35:19,000 MEMBERS' FEELINGS OF CAREGIVER 963 00:35:19,000 --> 00:35:20,520 BURDEN. 964 00:35:20,520 --> 00:35:22,480 THE INTERVENTION INVOLVES 965 00:35:22,480 --> 00:35:24,120 SELF-PACED MODULES PAIRED WITH 966 00:35:24,120 --> 00:35:26,320 LIVE ZOOM SESSIONS TAUGHT BY 967 00:35:26,320 --> 00:35:29,280 PEER TRAINERS OVER FIVE WEEKS. 968 00:35:29,280 --> 00:35:32,160 THIS PROJECT IS CURRENTLY 969 00:35:32,160 --> 00:35:33,960 RECRUITING FOR THIS RESEARCH. 970 00:35:33,960 --> 00:35:35,800 SO IF YOU'RE INTERESTED, THERE'S 971 00:35:35,800 --> 00:35:37,240 A LINK ON THIS PAGE WHERE YOU 972 00:35:37,240 --> 00:35:42,400 CAN GET MORE INFORMATION. 973 00:35:42,400 --> 00:35:43,280 FINALLY, I'D LIKE TO TELL YOU 974 00:35:43,280 --> 00:35:44,640 ABOUT A FEW OTHER RELEVANT 975 00:35:44,640 --> 00:35:49,440 RESOURCES FUNDED BY ACL. 976 00:35:49,440 --> 00:35:51,840 FIRST IS THE NATIONAL CENTER ON 977 00:35:51,840 --> 00:35:52,720 ADVANCING PERSON-CENTERED 978 00:35:52,720 --> 00:35:56,200 PRACTICES AND SYSTEMS, OR NCATS. 979 00:35:56,200 --> 00:35:59,160 THIS INITIATIVE IS SUPPORTED BY 980 00:35:59,160 --> 00:36:02,320 ACL AND CMS JOINTLY. 981 00:36:02,320 --> 00:36:05,520 THE PURPOSE OF NCATS IS TO HELP 982 00:36:05,520 --> 00:36:08,000 STATES, TRIBES AND TERRITORIES 983 00:36:08,000 --> 00:36:09,440 IMPLEMENT PERSON-CENTERED 984 00:36:09,440 --> 00:36:10,640 THINKING, PLANNING AND PRACTICE 985 00:36:10,640 --> 00:36:13,840 IN LINE WITH THE U.S. DEPARTMENT 986 00:36:13,840 --> 00:36:15,680 OF HEALTH AND HUMAN SERVICES 987 00:36:15,680 --> 00:36:16,120 POLICY. 988 00:36:16,120 --> 00:36:18,720 THE SERVICES THEY PROVIDE ARE IN 989 00:36:18,720 --> 00:36:23,240 DEPTH PRACTICAL TECHNICAL 990 00:36:23,240 --> 00:36:25,080 ASSISTANCE, TOPIC-SPECIFIC 991 00:36:25,080 --> 00:36:26,280 LEARNING COLLABORATIVES TO 992 00:36:26,280 --> 00:36:27,640 PROMOTE BROAD BASED LEARNING AND 993 00:36:27,640 --> 00:36:28,920 SHARING OF BEST PRACTICES, 994 00:36:28,920 --> 00:36:30,280 MONTHLY WEBINARS THAT ARE OPEN 995 00:36:30,280 --> 00:36:34,840 TO THE PUBLIC, AND THEY MAINTAIN 996 00:36:34,840 --> 00:36:37,120 A NATIONAL CLEARINGHOUSE OF 997 00:36:37,120 --> 00:36:38,680 ACTIONABLE UP TO DATE RESOURCES, 998 00:36:38,680 --> 00:36:40,200 AND THEY CONTINUOUSLY WORK TO 999 00:36:40,200 --> 00:36:41,520 INTEGRATE THE VOICE OF PEOPLE 1000 00:36:41,520 --> 00:36:44,800 WITH LIVED EXPERIENCE OF 1001 00:36:44,800 --> 00:36:46,120 DISABILITY AN IN OLDER ADULTS 1002 00:36:46,120 --> 00:36:47,640 WHO USE LONG-TERM SERVICES AND 1003 00:36:47,640 --> 00:36:52,880 SUPPORTS. 1004 00:36:52,880 --> 00:36:54,280 NEXT IS THE UNIVERSITY CENTERS 1005 00:36:54,280 --> 00:36:56,840 FOR EXCELLENCE IN DEVELOPMENTAL 1006 00:36:56,840 --> 00:37:00,680 DISABILITIES, OR UCEDDs. 1007 00:37:00,680 --> 00:37:01,880 ACL FUNDS CENTERS AT 1008 00:37:01,880 --> 00:37:03,080 UNIVERSITIES IN EVERY STATE AND 1009 00:37:03,080 --> 00:37:04,640 TERRITORY, AND THEIR PURPOSE TO 1010 00:37:04,640 --> 00:37:06,680 WORK TO IMPROVE THE HEALTH AND 1011 00:37:06,680 --> 00:37:09,000 WELL-BEING OF PEOPLE WITH IDD OR 1012 00:37:09,000 --> 00:37:11,160 DD BY TRAINING HEALTH 1013 00:37:11,160 --> 00:37:13,360 PROFESSIONALS, CONDUCTING 1014 00:37:13,360 --> 00:37:16,560 CUTTING-EDGE RESEARCH, OFFERING 1015 00:37:16,560 --> 00:37:18,000 MODEL DIAGNOSTIC AND CLINICAL 1016 00:37:18,000 --> 00:37:18,720 SERVICES, AND PROVIDING 1017 00:37:18,720 --> 00:37:19,720 RESOURCES FOR INDIVIDUALS, 1018 00:37:19,720 --> 00:37:23,880 FAMILIES AND PROFESSIONALS. 1019 00:37:23,880 --> 00:37:26,720 LAST BUT NOT LEAST ARE THE 1020 00:37:26,720 --> 00:37:27,480 CENTERS FOR INDEPENDENT LIVING. 1021 00:37:27,480 --> 00:37:29,240 THESE ARE DESIGNED AND OPERATED 1022 00:37:29,240 --> 00:37:30,920 BY INDIVIDUALS WITH 1023 00:37:30,920 --> 00:37:31,560 DISABILITIES. 1024 00:37:31,560 --> 00:37:33,280 THEY PROVIDE INDEPENDENT LIVING 1025 00:37:33,280 --> 00:37:36,680 SERVICES FOR PEOPLE WITH 1026 00:37:36,680 --> 00:37:37,600 DISABILITIES. 1027 00:37:37,600 --> 00:37:39,120 AND THESE PROGRAMS PROVIDE 1028 00:37:39,120 --> 00:37:40,760 TOOLS, RESOURCES AND SUPPORTS 1029 00:37:40,760 --> 00:37:42,080 FOR INTEGRATING PEOPLE WITH 1030 00:37:42,080 --> 00:37:43,280 DISABILITIES FULLY INTO THEIR 1031 00:37:43,280 --> 00:37:45,920 COMMUNITIES TO PROMOTE EQUAL 1032 00:37:45,920 --> 00:37:46,760 OPPORTUNITIES, 1033 00:37:46,760 --> 00:37:48,520 SELF-DETERMINATION AND RESPECT. 1034 00:37:48,520 --> 00:37:50,720 SOME OF THESE SERVICES INCLUDE 1035 00:37:50,720 --> 00:37:52,680 CONNECTING TO LOCAL SERVICES, 1036 00:37:52,680 --> 00:37:55,000 ASSISTING WITH JOB SEARCHES, 1037 00:37:55,000 --> 00:37:57,080 TEACHING LOCAL TRANSIT SKILLS, 1038 00:37:57,080 --> 00:37:59,040 HELPING WITH ASSISTIVE 1039 00:37:59,040 --> 00:38:01,800 TECHNOLOGY, AND SCHOOL-TO-CAREER 1040 00:38:01,800 --> 00:38:06,240 TRANSITION, AMONG OTHER THINGS. 1041 00:38:06,240 --> 00:38:09,000 THANK YOU FOR YOUR INTEREST IN 1042 00:38:09,000 --> 00:38:12,160 ACL'S PROGRAMS RELATED TO FETAL 1043 00:38:12,160 --> 00:38:13,240 ALCOHOL SPECTRUM DISORDER. 1044 00:38:13,240 --> 00:38:15,400 I HOPE YOU FOUND IT USEFUL AND 1045 00:38:15,400 --> 00:38:24,160 INFORMATIVE. 1046 00:38:24,160 --> 00:38:26,800 >> HI, I'M CAITLIN CROSS-BARNET, 1047 00:38:26,800 --> 00:38:28,760 DIVISION DIRECTOR IN THE 1048 00:38:28,760 --> 00:38:30,640 RESEARCH AND EVALUATION GROUP AT 1049 00:38:30,640 --> 00:38:31,680 THE CENTER FOR MEDICARE AND 1050 00:38:31,680 --> 00:38:33,240 MEDICAID SERVICES INNOVATION 1051 00:38:33,240 --> 00:38:34,840 CENTER, AND I'M HERE TO SHARE 1052 00:38:34,840 --> 00:38:39,120 SOME OF WHAT'S BEEN HAPPENING AT 1053 00:38:39,120 --> 00:38:39,480 CMS. 1054 00:38:39,480 --> 00:38:40,680 SO I'M GOING TO PUT SOME 1055 00:38:40,680 --> 00:38:41,920 RESOURCES UP HERE FOR EVERYBODY 1056 00:38:41,920 --> 00:38:47,520 TO SEE. 1057 00:38:47,520 --> 00:38:49,800 WE HAVE DONE A LOT OF WORK 1058 00:38:49,800 --> 00:38:51,560 AROUND POSTPARTUM CARE AT CMS 1059 00:38:51,560 --> 00:38:54,160 RECENTLY, EXTENDING POSTPARTUM 1060 00:38:54,160 --> 00:38:55,520 CARE ALLOWS FOR ONGOING 1061 00:38:55,520 --> 00:38:56,280 TREATMENT FOR PEOPLE WHO MAY 1062 00:38:56,280 --> 00:38:59,320 HAVE AN ALCOHOL USE DISORDER, 1063 00:38:59,320 --> 00:39:00,760 ALSO HELPS CONNECT THEM TO 1064 00:39:00,760 --> 00:39:02,920 SERVICES THAT MAY BE HELPFUL FOR 1065 00:39:02,920 --> 00:39:07,440 THEMSELVES AND THEIR INFANTS. 1066 00:39:07,440 --> 00:39:09,600 WE HAVE A LEARNING SERIES ON 1067 00:39:09,600 --> 00:39:10,760 IMPROVING POSTPARTUM CARE PUT ON 1068 00:39:10,760 --> 00:39:13,240 BY THE CENTER FOR MEDICAID AND 1069 00:39:13,240 --> 00:39:15,280 CHP SERVICES, AND ALL OF THE 1070 00:39:15,280 --> 00:39:16,600 WEBINAR RECORDINGS AS WELL AS 1071 00:39:16,600 --> 00:39:20,000 OTHER RESOURCES ARE AVAILABLE AT 1072 00:39:20,000 --> 00:39:20,520 THE WEBSITE. 1073 00:39:20,520 --> 00:39:22,120 I HAVE THE LINKS UP HERE. 1074 00:39:22,120 --> 00:39:25,240 CMS ALSO HAS A MATERNITY CARE 1075 00:39:25,240 --> 00:39:26,440 ACTION PLAN THAT SPECIFICALLY 1076 00:39:26,440 --> 00:39:28,440 HAS DIRECTION ON EXPANDING 1077 00:39:28,440 --> 00:39:30,320 POSTPARTUM CARE TO A FULL YEAR 1078 00:39:30,320 --> 00:39:32,520 FOR MEDICAID BENEFICIARIES 1079 00:39:32,520 --> 00:39:34,360 RATHER THAN TERMINATING AT 60 1080 00:39:34,360 --> 00:39:35,920 DAYS, WHICH HAS BEEN THE PAST 1081 00:39:35,920 --> 00:39:36,440 POLICY. 1082 00:39:36,440 --> 00:39:38,960 THE AMERICAN RESCUE PLAN HAS 1083 00:39:38,960 --> 00:39:43,120 ALLOWED THIS EXPANSION. 1084 00:39:43,120 --> 00:39:44,960 AND THEIR FULL MATERNITY CARE 1085 00:39:44,960 --> 00:39:46,400 ACTION PLAN WHICH ALSO COVERS 1086 00:39:46,400 --> 00:39:47,720 MANY OTHER AREAS IS AVAILABLE ON 1087 00:39:47,720 --> 00:39:48,600 OUR WEBSITE AS WELL. 1088 00:39:48,600 --> 00:39:51,560 IF YOU ARE INTERESTED IN SEEING 1089 00:39:51,560 --> 00:39:52,760 A PRESENTATION ON SOME OF OUR 1090 00:39:52,760 --> 00:39:54,720 PAST WORK AROUND POSTPARTUM CARE 1091 00:39:54,720 --> 00:39:55,920 AND OUR LEARNINGS FROM THE 1092 00:39:55,920 --> 00:39:57,880 INNOVATION CENTER MODELS, AS 1093 00:39:57,880 --> 00:39:59,880 WELL AS AN EXPLANATION OF OUR 1094 00:39:59,880 --> 00:40:01,960 POSTPARTUM CARE PLAN, YOU CAN 1095 00:40:01,960 --> 00:40:04,360 FIND IT AT THE P2P POSTPARTUM 1096 00:40:04,360 --> 00:40:05,400 CONFERENCE THAT WAS PUT ON BY 1097 00:40:05,400 --> 00:40:07,640 OUR COLLEAGUES AT NIH. 1098 00:40:07,640 --> 00:40:08,760 OUR PRESENTATION IS FOR THE 1099 00:40:08,760 --> 00:40:10,640 RECORDING FOR THE SECOND DAY AT 1100 00:40:10,640 --> 00:40:12,840 4:30, AND IS AVAILABLE HERE. 1101 00:40:12,840 --> 00:40:15,240 WE ALSO HAVE TWO PROGRAMS AT THE 1102 00:40:15,240 --> 00:40:16,320 INNOVATION CENTER THAT DIRECTLY 1103 00:40:16,320 --> 00:40:20,920 TAKE ON ISSUES THAT CAN AFFECT 1104 00:40:20,920 --> 00:40:22,480 FASD AND DIAGNOSIS AND TREATMENT 1105 00:40:22,480 --> 00:40:25,240 AND ALSO FOR PREVENTING FASD BY 1106 00:40:25,240 --> 00:40:26,760 ADDRESSING ALCOHOL USE 1107 00:40:26,760 --> 00:40:27,080 DISORDERS. 1108 00:40:27,080 --> 00:40:29,160 ONE IS THE MATERNAL OPIOID 1109 00:40:29,160 --> 00:40:31,040 MISUSE MODEL, AND WE HAVE THE 1110 00:40:31,040 --> 00:40:35,320 WEBSITE FOR THAT HERE. 1111 00:40:35,320 --> 00:40:37,040 THE MATERNAL OPIOID MISUSE MODEL 1112 00:40:37,040 --> 00:40:38,680 IS DESIGNED TO CREATE INTEGRATED 1113 00:40:38,680 --> 00:40:40,400 CARE FOR PREGNANT AND POSTPARTUM 1114 00:40:40,400 --> 00:40:41,920 PEOPLE WITH AN OPIOID USE 1115 00:40:41,920 --> 00:40:42,200 DISORDER. 1116 00:40:42,200 --> 00:40:44,960 MANY OF THEM ALSO HAVE 1117 00:40:44,960 --> 00:40:46,840 CO-MORBID -- OTHER SUBSTANCE USE 1118 00:40:46,840 --> 00:40:49,120 DISORDERS. 1119 00:40:49,120 --> 00:40:51,440 AND WE ARE ABLE TO PROVIDE 1120 00:40:51,440 --> 00:40:53,960 RESOURCES TO HELP TREAT THAT AND 1121 00:40:53,960 --> 00:40:55,600 ALSO TO KEEP A SPECIAL EYE ON 1122 00:40:55,600 --> 00:40:57,800 THE INFANT AFTER BIRTH IN ORDER 1123 00:40:57,800 --> 00:41:01,840 TO BE ABLE TO DIAGNOSE ANY 1124 00:41:01,840 --> 00:41:02,840 PROBLEMS THAT ARE EVIDENT VERY 1125 00:41:02,840 --> 00:41:03,720 EARLY ON. 1126 00:41:03,720 --> 00:41:04,680 THE INTEGRATED CARE FOR KIDS 1127 00:41:04,680 --> 00:41:07,560 MODEL IS INTENDED TO PROVIDE, AS 1128 00:41:07,560 --> 00:41:09,720 THE NAME IMPLIES, INTEGRATED 1129 00:41:09,720 --> 00:41:10,960 CARE FOR KIDS THROUGH 1130 00:41:10,960 --> 00:41:13,720 INTEGRATING HEALTH-RELATED 1131 00:41:13,720 --> 00:41:17,000 SOCIAL SERVICES SUCH AS FOOD AND 1132 00:41:17,000 --> 00:41:18,720 HOUSING, EARLY CHILDHOOD 1133 00:41:18,720 --> 00:41:20,680 RESOURCES, IN ADDITION TO HEALTH 1134 00:41:20,680 --> 00:41:22,240 AND BEHAVIORAL HEALTHCARE, 1135 00:41:22,240 --> 00:41:23,560 PHYSICAL AND BEHAVIORAL 1136 00:41:23,560 --> 00:41:24,640 HEALTHCARE, AND PART OF THE GOAL 1137 00:41:24,640 --> 00:41:25,840 OF INTEGRATED CARE FOR KIDS IS 1138 00:41:25,840 --> 00:41:27,520 TO REALLY MAKE SURE ALL OF THAT 1139 00:41:27,520 --> 00:41:28,840 CARE IS INTEGRATED AND THAT 1140 00:41:28,840 --> 00:41:32,440 THERE ARE WAYS FOR PROVIDERS TO 1141 00:41:32,440 --> 00:41:33,200 COMMUNICATE FOR CARE 1142 00:41:33,200 --> 00:41:35,200 COORDINATION TO OCCUR IN A 1143 00:41:35,200 --> 00:41:36,600 CENTRALIZED WAY. 1144 00:41:36,600 --> 00:41:38,240 HOWEVER, DATA SHARING WHICH CAN 1145 00:41:38,240 --> 00:41:40,160 REALLY HELP FAMILIES THAT ARE 1146 00:41:40,160 --> 00:41:43,400 AFFECTED BY FASD TO GET THE 1147 00:41:43,400 --> 00:41:45,160 SOCIAL AND HEALTH RESOURCES THAT 1148 00:41:45,160 --> 00:41:47,200 THEY NEED CAN BE REALLY 1149 00:41:47,200 --> 00:41:48,240 DIFFICULT AND FROM BOTH THE 1150 00:41:48,240 --> 00:41:50,200 MATERNAL OPIOID MISUSE MODEL AND 1151 00:41:50,200 --> 00:41:51,400 INTEGRATED CARE FOR KIDS MODEL, 1152 00:41:51,400 --> 00:41:54,480 WE'VE NOTED SOME SPECIFIC AREAS 1153 00:41:54,480 --> 00:41:56,920 THAT MAKE DATA SHARING 1154 00:41:56,920 --> 00:41:58,320 DIFFICULT. 1155 00:41:58,320 --> 00:42:00,520 SPECIFICALLY LEGAL RESTRICTIONS, 1156 00:42:00,520 --> 00:42:03,080 SILOED BUSINESS PROCESSES IN 1157 00:42:03,080 --> 00:42:05,040 WHICH ORGANIZATIONS JUST OPERATE 1158 00:42:05,040 --> 00:42:07,480 VERY DIFFERENTLY AND AREN'T USED 1159 00:42:07,480 --> 00:42:08,520 TO SHARING AND COMMUNICATING 1160 00:42:08,520 --> 00:42:09,840 WITH ORGANIZATIONS THAT MIGHT 1161 00:42:09,840 --> 00:42:11,800 MAKE GOOD PARTNERS FOR PROVIDING 1162 00:42:11,800 --> 00:42:14,440 THE SERVICES OR MAKING SURE THAT 1163 00:42:14,440 --> 00:42:15,720 FAMILIES HAVE ACCESS TO ALL THE 1164 00:42:15,720 --> 00:42:18,640 SERVICES THEY NEED. 1165 00:42:18,640 --> 00:42:20,160 MANY DATA PLATFORMS ARE 1166 00:42:20,160 --> 00:42:21,160 INCOMPATIBLE EVEN WITHIN THE 1167 00:42:21,160 --> 00:42:24,640 HEALTH SYSTEM, MANY ELECTRONIC 1168 00:42:24,640 --> 00:42:26,840 HEALTH -- EHR PLATFORMS, 1169 00:42:26,840 --> 00:42:27,720 ELECTRONIC HEALTH RECORD 1170 00:42:27,720 --> 00:42:29,000 PLATFORMS ARE INCOMPATIBLE WITH 1171 00:42:29,000 --> 00:42:30,240 ONE ANOTHER. 1172 00:42:30,240 --> 00:42:32,880 MANY STAFF AGENCIES DON'T HAVE A 1173 00:42:32,880 --> 00:42:35,080 LOT OF STAFF BANDWIDTH, A 1174 00:42:35,080 --> 00:42:36,280 PROBLEM THAT WAS EXACERBATED BY 1175 00:42:36,280 --> 00:42:37,680 THE COVID-19 PANDEMIC. 1176 00:42:37,680 --> 00:42:39,240 THERE ARE MANY CHALLENGES TO 1177 00:42:39,240 --> 00:42:40,120 ESTABLISHING DATA USE 1178 00:42:40,120 --> 00:42:43,720 AGREEMENTS, INCLUDING LEGAL 1179 00:42:43,720 --> 00:42:44,920 RESTRICTIONS AND TIME, AND ALSO 1180 00:42:44,920 --> 00:42:47,160 JUST A LACK OF PRACTICE WITH IT 1181 00:42:47,160 --> 00:42:48,000 OR UNDERSTANDING OF THE 1182 00:42:48,000 --> 00:42:49,600 IMPORTANCE OF IT, AND THERE ARE 1183 00:42:49,600 --> 00:42:52,520 ALSO A LACK OF ESTABLISHED 1184 00:42:52,520 --> 00:42:53,520 PRACTICES FOR ACTUALLY USING 1185 00:42:53,520 --> 00:42:54,480 DATA TO IMPROVE CARE. 1186 00:42:54,480 --> 00:42:55,440 SO THOSE ARE SOME OF THE THINGS 1187 00:42:55,440 --> 00:42:57,040 THAT WE ARE WORKING ON TO TRY TO 1188 00:42:57,040 --> 00:42:58,560 HELP FAMILIES ACCESS THE CARE 1189 00:42:58,560 --> 00:43:00,200 THAT THEY NEED, GET EARLY 1190 00:43:00,200 --> 00:43:01,320 DIAGNOSIS FOR THEIR CHILDREN, 1191 00:43:01,320 --> 00:43:02,960 AND BE ABLE TO ACCESS ANY KIND 1192 00:43:02,960 --> 00:43:05,920 OF TREATMENT THEY NEED EITHER 1193 00:43:05,920 --> 00:43:11,840 FOR ALCOHOL USE DISORDER OR 1194 00:43:11,840 --> 00:43:12,840 TREATING CHILDREN WHO MAY BE 1195 00:43:12,840 --> 00:43:14,560 SHOWING SIGNS OF FASD AND BEING 1196 00:43:14,560 --> 00:43:15,560 ABLE TO COORDINATE THEIR CARE. 1197 00:43:15,560 --> 00:43:25,640 THANK YOU. 1198 00:43:25,640 --> 00:43:26,520 >> GOOD MORNING. 1199 00:43:26,520 --> 00:43:28,960 MY NAME IS DAWN LEVINSON, AND 1200 00:43:28,960 --> 00:43:30,400 I'M THE DEPUTY DIRECTOR OF THE 1201 00:43:30,400 --> 00:43:32,600 DIVISION OF HEALTHY START AND 1202 00:43:32,600 --> 00:43:35,760 PERINATAL SERVICES IN HRSA'S 1203 00:43:35,760 --> 00:43:36,760 MATERNAL AND CHILD HEALTH 1204 00:43:36,760 --> 00:43:37,640 BUREAU. 1205 00:43:37,640 --> 00:43:39,280 FORMERLY I WAS THE HEALTH LEAD. 1206 00:43:39,280 --> 00:43:40,680 I AM PLEASED TO PROVIDE SOME 1207 00:43:40,680 --> 00:43:42,040 UPDATES TODAY ON HRSA'S 1208 00:43:42,040 --> 00:43:44,720 INVESTMENT TO SUPPORT FASD 1209 00:43:44,720 --> 00:43:46,400 SCREENING AND INTERVENTION. 1210 00:43:46,400 --> 00:43:47,840 BEFORE I PROVIDE UPDATES, I'D 1211 00:43:47,840 --> 00:43:51,880 LIKE TO PROVIDE SOME CONTEXT BY 1212 00:43:51,880 --> 00:43:53,440 SHARING MCHB'S MISSION AND 1213 00:43:53,440 --> 00:43:56,800 STRATEGIC PLAN AND A SNAPSHOT OF 1214 00:43:56,800 --> 00:43:59,920 OUR FY 23 FUNDING FOR OUR 1215 00:43:59,920 --> 00:44:01,000 INTERNAL AND MATERNAL HEALTH 1216 00:44:01,000 --> 00:44:03,200 PORTFOLIO. 1217 00:44:03,200 --> 00:44:05,720 MCHB'S PROGRAM'S FUNDAMENTALLY 1218 00:44:05,720 --> 00:44:07,040 PROMOTE MENTAL HEALTH AND 1219 00:44:07,040 --> 00:44:07,920 WELL-BEING FOR MATERNAL AND 1220 00:44:07,920 --> 00:44:09,040 CHILD HEALTH POPULATIONS ACROSS 1221 00:44:09,040 --> 00:44:09,640 THE LIFESPAN. 1222 00:44:09,640 --> 00:44:11,440 OUR WORK SUPPORTS THE PRINCIPLE 1223 00:44:11,440 --> 00:44:13,200 THAT THERE IS NO HEALTH WITHOUT 1224 00:44:13,200 --> 00:44:15,800 MENTAL HEALTH. 1225 00:44:15,800 --> 00:44:18,680 MCHB RECENTLY LAUNCHED A NEW 1226 00:44:18,680 --> 00:44:19,880 STRATEGIC PLAN THAT WILL GUIDE 1227 00:44:19,880 --> 00:44:21,400 OUR WORK OVER THE NEXT 10 TO 15 1228 00:44:21,400 --> 00:44:21,840 YEARS. 1229 00:44:21,840 --> 00:44:23,160 THE PLAN SETS OUT FOUR GOALS 1230 00:44:23,160 --> 00:44:24,400 THAT SUPPORT OUR MISSION TO 1231 00:44:24,400 --> 00:44:26,920 IMPROVE THE HEALTH AND HEALTH AD 1232 00:44:26,920 --> 00:44:29,840 WELL-BEING OF OUR NATION'S 1233 00:44:29,840 --> 00:44:30,640 MOTHERS, CHILDREN AND FAMILIES. 1234 00:44:30,640 --> 00:44:32,520 THAT'S ACCESS, EQUITY, CAPACITY, 1235 00:44:32,520 --> 00:44:40,840 AND IMPACT. 1236 00:44:40,840 --> 00:44:42,920 IMPROVE ACCESS TO QUALITY 1237 00:44:42,920 --> 00:44:45,200 SERVICES, ADVANCE EQUITY, AND 1238 00:44:45,200 --> 00:44:48,160 STRENGTHEN THE MCH WORKFORCE TO 1239 00:44:48,160 --> 00:44:49,880 MEET FAMILIES' BEHAVIORAL HEALTH 1240 00:44:49,880 --> 00:44:50,080 NEEDS. 1241 00:44:50,080 --> 00:44:52,040 AND WE TRACK PERFORMANCE AND 1242 00:44:52,040 --> 00:44:53,440 OUTCOMES ACROSS DIVERSE MEASURES 1243 00:44:53,440 --> 00:44:58,160 TO MAXIMIZE IMPACT. 1244 00:44:58,160 --> 00:45:00,280 FOR FY 23, MCHB AS A WHOLE 1245 00:45:00,280 --> 00:45:02,680 RECEIVED A NEARLY $250 MILLION 1246 00:45:02,680 --> 00:45:05,520 INCREASE TO OUR BUDGET COMPARED 1247 00:45:05,520 --> 00:45:06,960 TO FY 22. 1248 00:45:06,960 --> 00:45:07,640 NOTABLY THE DIVISION OF HEALTHY 1249 00:45:07,640 --> 00:45:09,160 START AND PERINATAL SERVICES 1250 00:45:09,160 --> 00:45:11,840 RECEIVED A $58 MILLION INCREASE. 1251 00:45:11,840 --> 00:45:13,760 THIS IS THE DIVISION IN WHICH 1252 00:45:13,760 --> 00:45:15,480 OUR FASD INVESTMENT RESIDES. 1253 00:45:15,480 --> 00:45:17,720 THIS IS AN APPROXIMATELY 30% 1254 00:45:17,720 --> 00:45:19,120 INCREASE TO OUR MATERNAL AND 1255 00:45:19,120 --> 00:45:21,000 INFANT HEALTH PORTFOLIO. 1256 00:45:21,000 --> 00:45:22,640 YOU CAN SEE THE SIGNIFICANT 1257 00:45:22,640 --> 00:45:24,080 INCREASES WE RECEIVED ON THIS 1258 00:45:24,080 --> 00:45:25,720 SLIDE FOR THE ALLIANCE FOR 1259 00:45:25,720 --> 00:45:27,040 INNOVATION ON MATERNAL HEALTH, 1260 00:45:27,040 --> 00:45:31,720 OR AIM, FOR HEALTHY START, FOR 1261 00:45:31,720 --> 00:45:32,760 THE MATERNAL MENTAL HEALTH 1262 00:45:32,760 --> 00:45:34,080 HOTLINE, FOR SCREENING AND 1263 00:45:34,080 --> 00:45:35,520 TREATMENT FOR MATERNAL MENTAL 1264 00:45:35,520 --> 00:45:37,840 HEALTH AND SUBSTANCE USE 1265 00:45:37,840 --> 00:45:39,000 DISORDERS, FOR THE STATE 1266 00:45:39,000 --> 00:45:41,760 MATERNAL HEALTH INNOVATION 1267 00:45:41,760 --> 00:45:43,080 GRANTS AND 10 MILLION FOR A 1268 00:45:43,080 --> 00:45:44,760 BRAND NEW PROGRAM CALLED 1269 00:45:44,760 --> 00:45:45,440 INTEGRATED MATERNAL HEALTH 1270 00:45:45,440 --> 00:45:46,280 SERVICES. 1271 00:45:46,280 --> 00:45:48,240 AS A RESULT OF THE INCREASED 1272 00:45:48,240 --> 00:45:49,240 APPROPRIATIONS, WE CURRENTLY 1273 00:45:49,240 --> 00:45:50,600 HAVE FIVE OPEN FUNDING 1274 00:45:50,600 --> 00:45:52,560 OPPORTUNITIES CLOSING ON VARIOUS 1275 00:45:52,560 --> 00:45:54,880 DATES IN MAY AND JUNE. 1276 00:45:54,880 --> 00:45:57,280 FOR PROGRAM ELIGIBILITY AND 1277 00:45:57,280 --> 00:46:02,520 DETAILS, PLEASE VISIT 1278 00:46:02,520 --> 00:46:06,600 MCHB.HRSA.GOV/FUNDING. 1279 00:46:06,600 --> 00:46:09,160 MCHB'S FASD INVESTMENT IS THE 1280 00:46:09,160 --> 00:46:10,000 SUPPORTING FETAL ALCOHOL 1281 00:46:10,000 --> 00:46:11,560 SPECTRUM DISORDER SCREENING AND 1282 00:46:11,560 --> 00:46:12,400 INTERVENTION PROGRAM. 1283 00:46:12,400 --> 00:46:15,200 OUR AWARDEE CALLS IT THE SAFEST 1284 00:46:15,200 --> 00:46:16,480 CHOICE LEARNING COLLABORATIVE. 1285 00:46:16,480 --> 00:46:18,000 INITIALLY IT WAS A THREE-YEAR 1286 00:46:18,000 --> 00:46:20,440 PRIMARY CARE PROVIDER EDUCATION 1287 00:46:20,440 --> 00:46:22,520 PROGRAM THAT AIMS TO REDUCE THE 1288 00:46:22,520 --> 00:46:25,040 INCIDENCE OF PRENATAL ALCOHOL 1289 00:46:25,040 --> 00:46:26,200 EXPOSURE, AND IMPROVE OUTCOMES 1290 00:46:26,200 --> 00:46:28,160 IN CHILDREN WITH SUSPECTED OR 1291 00:46:28,160 --> 00:46:32,640 DIAGNOSED FASDs THROUGH THE 1292 00:46:32,640 --> 00:46:33,120 PROJECT MODEL. 1293 00:46:33,120 --> 00:46:34,400 THE PROGRAM WAS DESIGNED TO 1294 00:46:34,400 --> 00:46:36,080 REACH PROVIDERS IN STATES, 1295 00:46:36,080 --> 00:46:37,720 TERRITORIES, TRIBES, TRIBAL 1296 00:46:37,720 --> 00:46:38,280 ORGANIZATIONS OR COMMUNITIES 1297 00:46:38,280 --> 00:46:40,240 THAT HAVE HIGH RATES OF BINGE 1298 00:46:40,240 --> 00:46:41,560 DRINKING AMONG PREGNANT WOMEN, 1299 00:46:41,560 --> 00:46:45,960 AND ESPECIALLY IN RURAL AREAS. 1300 00:46:45,960 --> 00:46:47,760 BECAUSE OF PROVIDERS' INCREASED 1301 00:46:47,760 --> 00:46:49,240 INTEREST IN THIS TRAINING AND 1302 00:46:49,240 --> 00:46:51,160 TECHNICAL ASSISTANCE PROGRAM, 1303 00:46:51,160 --> 00:46:52,880 MCHB WAS ABLE TO AWARD A 1304 00:46:52,880 --> 00:46:53,680 SUPPLEMENTAL FOURTH YEAR OF 1305 00:46:53,680 --> 00:46:53,920 FUNDING. 1306 00:46:53,920 --> 00:46:55,320 THIS IS ALLOWING PROVIDERS WHO 1307 00:46:55,320 --> 00:46:57,040 HAVE BEEN ON THE WAIT LIST TO 1308 00:46:57,040 --> 00:46:58,720 ENROLL IN A THIRD COHORT OF THIS 1309 00:46:58,720 --> 00:47:00,400 LEARNING COLLABORATIVE. 1310 00:47:00,400 --> 00:47:01,800 THE COOPERATIVE AGREEMENT WAS 1311 00:47:01,800 --> 00:47:04,040 AWARDED TO BOSTON MEDICAL CENTER 1312 00:47:04,040 --> 00:47:05,680 IN PARTNERSHIP WITH THE 1313 00:47:05,680 --> 00:47:06,640 MINNESOTA BASE PROOF ALLIANCE 1314 00:47:06,640 --> 00:47:07,920 AND IT'S NOW IN PROJECT YEAR 1315 00:47:07,920 --> 00:47:10,120 THREE OF FOUR. 1316 00:47:10,120 --> 00:47:12,040 THERE ARE TWO KEY PROGRAM GOALS. 1317 00:47:12,040 --> 00:47:14,760 THE GOALS ARE: TO IMPROVE THE 1318 00:47:14,760 --> 00:47:15,560 ABILITY OF PRIMARY CARE 1319 00:47:15,560 --> 00:47:17,760 PROVIDERS SERVING PREGNANT WOMEN 1320 00:47:17,760 --> 00:47:19,720 TO SCREEN THEIR PATIENTS FOR 1321 00:47:19,720 --> 00:47:21,680 ALCOHOL USE, PROVIDE BRIEF 1322 00:47:21,680 --> 00:47:23,320 INTERVENTION, AND REFER HIGH 1323 00:47:23,320 --> 00:47:25,000 RISK PREGNANT WOMEN TO SPECIALTY 1324 00:47:25,000 --> 00:47:25,240 CARE. 1325 00:47:25,240 --> 00:47:27,560 AND SECONDLY, TO IMPROVE THE 1326 00:47:27,560 --> 00:47:29,080 ABILITY OF PROVIDERS SERVING 1327 00:47:29,080 --> 00:47:30,400 CHILDREN AND ADOLESCENTS TO 1328 00:47:30,400 --> 00:47:32,400 SCREEN THEIR PATIENTS FOR 1329 00:47:32,400 --> 00:47:33,920 PRENATAL ALCOHOL EXPOSURE AMONG 1330 00:47:33,920 --> 00:47:36,280 THOSE SUSPECTED OF FASD, AND TO 1331 00:47:36,280 --> 00:47:38,080 MANAGE AND PROVIDE REFERRALS TO 1332 00:47:38,080 --> 00:47:39,520 NECESSARY SERVICES FOR THOSE 1333 00:47:39,520 --> 00:47:42,480 IDENTIFIED WITH FASD. 1334 00:47:42,480 --> 00:47:45,000 PARTICIPATING PROVIDERS INCLUDE 1335 00:47:45,000 --> 00:47:47,560 PHYSICIANS, NURSE PRACTITIONERS, 1336 00:47:47,560 --> 00:47:48,640 NURSES, BEHAVIORAL HEALTH 1337 00:47:48,640 --> 00:47:49,840 SPECIALISTS, AND OTHER TEAM 1338 00:47:49,840 --> 00:47:51,160 MEMBERS IN A HEALTHCARE 1339 00:47:51,160 --> 00:47:54,560 PRACTICE. 1340 00:47:54,560 --> 00:47:55,880 CALLED THE SAFEST CHOICE 1341 00:47:55,880 --> 00:47:56,640 LEARNING COLLABORATIVE, THE 1342 00:47:56,640 --> 00:47:58,600 PROGRAM RECRUITS AND EDUCATES 1343 00:47:58,600 --> 00:47:59,840 HEALTHCARE TEAMS AT COMMUNITY 1344 00:47:59,840 --> 00:48:01,840 AND TRIBAL HEALTH CENTERS IN 1345 00:48:01,840 --> 00:48:04,040 RURAL, URBAN AND TRIBAL 1346 00:48:04,040 --> 00:48:06,080 COMMUNITIES IN NEW ENGLAND AND 1347 00:48:06,080 --> 00:48:07,520 THE UPPER MIDWEST THROUGH 1348 00:48:07,520 --> 00:48:11,280 YEAR-LONG PRENATAL AND PEDIATRIC 1349 00:48:11,280 --> 00:48:12,920 PROJECT ECHO COHORTS. 1350 00:48:12,920 --> 00:48:14,520 THE FIRST 10-SESSION COHORT 1351 00:48:14,520 --> 00:48:17,440 BEGAN IN JUNE 2021, AND ENDED IN 1352 00:48:17,440 --> 00:48:18,800 APRIL 2022. 1353 00:48:18,800 --> 00:48:21,600 THE SECOND COHORT STARTED IN MAY 1354 00:48:21,600 --> 00:48:24,640 2022 AND ENDS THIS MONTH, IN 1355 00:48:24,640 --> 00:48:25,840 APRIL 2023. 1356 00:48:25,840 --> 00:48:26,720 PARTICIPATING HEALTH CENTERS 1357 00:48:26,720 --> 00:48:29,240 RECEIVE A STIPEND, TECHNICAL 1358 00:48:29,240 --> 00:48:31,000 ASSISTANCE, A CERTIFICATE OF 1359 00:48:31,000 --> 00:48:33,000 COMPLETION, AND FREE 1360 00:48:33,000 --> 00:48:34,400 INTERPROFESSIONAL CE CREDITS. 1361 00:48:34,400 --> 00:48:37,480 IN ORDER TO HELP KEEP COHORTS 1362 00:48:37,480 --> 00:48:39,480 ENGAGED, SAFEST CHOICE CREATED 1363 00:48:39,480 --> 00:48:41,120 AND ADMINISTERED A BASELINE 1364 00:48:41,120 --> 00:48:43,320 NEEDS ASSESSMENT, CREATED A 1365 00:48:43,320 --> 00:48:44,160 CONFIRMATION OF COMMITMENT 1366 00:48:44,160 --> 00:48:45,720 LETTER FOR HEALTH CENTERS TO 1367 00:48:45,720 --> 00:48:47,920 SIGN, AND MET WITH CLINICS ON AN 1368 00:48:47,920 --> 00:48:52,320 ONGOING BASIS FOR CHECK-INS. 1369 00:48:52,320 --> 00:48:57,280 HERE'S A MAP OF WHERE OUR COHORT 1370 00:48:57,280 --> 00:48:59,000 1 PARTICIPATING PRACTICES ARE 1371 00:48:59,000 --> 00:48:59,600 LOCATED. 1372 00:48:59,600 --> 00:49:02,400 IN COHORT 1, SAFEST CHOICE 1373 00:49:02,400 --> 00:49:03,000 ENROLLED 15 COMMUNITY HEALTH 1374 00:49:03,000 --> 00:49:04,480 CENTERS WHICH INCLUDED 10 1375 00:49:04,480 --> 00:49:05,640 PRENATAL PRACTICES AND 12 1376 00:49:05,640 --> 00:49:08,720 PEDIATRIC PRACTICES FROM SEVEN 1377 00:49:08,720 --> 00:49:09,600 STATES: SOUTH DAKOTA, 1378 00:49:09,600 --> 00:49:11,640 MINNESOTA, IOWA, MICHIGAN, 1379 00:49:11,640 --> 00:49:12,960 MASSACHUSETTS, RHODE ISLAND AND 1380 00:49:12,960 --> 00:49:13,720 MAINE. 1381 00:49:13,720 --> 00:49:15,720 FIVE OF THE 22 PRACTICES WERE 1382 00:49:15,720 --> 00:49:18,280 TRIBAL HEALTH CLINICS. 1383 00:49:18,280 --> 00:49:19,480 AND NINE WERE FROM RURAL AREAS. 1384 00:49:19,480 --> 00:49:21,680 THERE ARE SEVERAL OTHERS THAT 1385 00:49:21,680 --> 00:49:24,320 SERVE TRIBAL COMMUNITIES. 1386 00:49:24,320 --> 00:49:26,160 HERE'S A MAP OF COHORT 1387 00:49:26,160 --> 00:49:26,720 2 PRACTICES. 1388 00:49:26,720 --> 00:49:30,240 IN COHORT 2, SAFEST CHOICE 1389 00:49:30,240 --> 00:49:31,120 ENROLLED 16 COMMUNITY HEALTH 1390 00:49:31,120 --> 00:49:33,320 CENTERS WHICH INCLUDED 11 1391 00:49:33,320 --> 00:49:35,040 PRENATAL AND 11 PEDIATRIC 1392 00:49:35,040 --> 00:49:36,720 PRACTICES FROM SEVEN STATES. 1393 00:49:36,720 --> 00:49:39,440 NORTH DAKOTA, SOUTH DAKOTA, 1394 00:49:39,440 --> 00:49:40,760 MINNESOTA, ILLINOIS, 1395 00:49:40,760 --> 00:49:42,280 MASSACHUSETTS, RHODE ISLAND AND 1396 00:49:42,280 --> 00:49:42,640 MAINE. 1397 00:49:42,640 --> 00:49:44,960 SIX OF THESE 22 PRACTICES ARE 1398 00:49:44,960 --> 00:49:47,360 TRIBAL HEALTH CLINICS AND SEVEN 1399 00:49:47,360 --> 00:49:49,880 ARE RURAL CLINICS. 1400 00:49:49,880 --> 00:49:52,520 ALSO INCLUDED IN COHORT 2 ARE 1401 00:49:52,520 --> 00:49:53,800 TWO SPECIAL PARTICIPANTS, ONE 1402 00:49:53,800 --> 00:49:55,360 FROM A LARGE MASSACHUSETTS-BASED 1403 00:49:55,360 --> 00:49:57,520 HOSPITAL SYSTEM AND ONE FROM THE 1404 00:49:57,520 --> 00:49:58,520 NORTH DAKOTA STATE DEPARTMENT OF 1405 00:49:58,520 --> 00:50:02,440 PUBLIC HEALTH. 1406 00:50:02,440 --> 00:50:04,400 FOR THE PROGRAM, THE CURRICULUM 1407 00:50:04,400 --> 00:50:06,200 INCLUDES AN HOUR-LONG 1408 00:50:06,200 --> 00:50:09,160 INTRODUCTORY WEBINAR ABOUT THE 1409 00:50:09,160 --> 00:50:13,640 FOUNDATIONAL SCIENCE OF FASD. 1410 00:50:13,640 --> 00:50:15,760 THE CORE CONTENT MODULE SEEN 1411 00:50:15,760 --> 00:50:16,080 HERE. 1412 00:50:16,080 --> 00:50:17,920 AT THOSE SESSIONS ALSO INCLUDE 1413 00:50:17,920 --> 00:50:20,440 ADDITIONAL EDUCATIONAL CONTENT 1414 00:50:20,440 --> 00:50:22,880 INCLUDING DEMONSTRATION VIDEOS 1415 00:50:22,880 --> 00:50:24,320 OF COMPLEX PATIENT CONVERSATIONS 1416 00:50:24,320 --> 00:50:26,400 AND INTERVIEWS WITH PEOPLE WITH 1417 00:50:26,400 --> 00:50:27,600 LIVED EXPERIENCE. 1418 00:50:27,600 --> 00:50:29,320 PARTICIPANTS ALSO ENGAGE IN 1419 00:50:29,320 --> 00:50:31,560 SKILLS PRACTICE, SMALL GROUP 1420 00:50:31,560 --> 00:50:34,640 WORK, POLLS, WORD CLOUDS, CASE 1421 00:50:34,640 --> 00:50:36,080 PRESENTATIONS, AND 1422 00:50:36,080 --> 00:50:36,960 CLINIC-SPECIFIC COMMUNITY 1423 00:50:36,960 --> 00:50:39,800 RESOURCE EXPEDITIONS. 1424 00:50:39,800 --> 00:50:41,120 FACULTY INCLUDE AN 1425 00:50:41,120 --> 00:50:42,400 INTERPROFESSIONAL GROUP. 1426 00:50:42,400 --> 00:50:44,640 NDs, RNs, LICENSED 1427 00:50:44,640 --> 00:50:45,840 INDEPENDENT CLINICAL SOCIAL 1428 00:50:45,840 --> 00:50:48,160 WORKERS, MIDWIVES, NURSE 1429 00:50:48,160 --> 00:50:49,160 PRACTITIONERS, AS WELL AS 1430 00:50:49,160 --> 00:50:50,920 DIVERSITY IN TERMS OF RACE AND 1431 00:50:50,920 --> 00:50:52,560 ETHNICITY, INCLUDING NATIVE 1432 00:50:52,560 --> 00:50:54,880 AMERICAN REPRESENTATION. 1433 00:50:54,880 --> 00:50:57,200 THE PROGRAM ALSO CONVENES AN 1434 00:50:57,200 --> 00:50:58,400 INTERPROFESSIONAL AND DIVERSE 1435 00:50:58,400 --> 00:50:59,920 12-MEMBER ADVISORY BOARD THAT 1436 00:50:59,920 --> 00:51:01,920 ADVISES ON CURRICULUM, 1437 00:51:01,920 --> 00:51:03,680 RECRUITMENT, DISSEMINATION, AND 1438 00:51:03,680 --> 00:51:04,320 SUSTAINABILITY. 1439 00:51:04,320 --> 00:51:06,840 THE BOARD MEETS FORMALLY AS A 1440 00:51:06,840 --> 00:51:11,120 GROUP ONCE A YEAR. 1441 00:51:11,120 --> 00:51:12,400 WELL, WE JUST REVIEWED THE 1442 00:51:12,400 --> 00:51:13,640 CONTENT ON THIS SLIDE, SO I WILL 1443 00:51:13,640 --> 00:51:17,280 MOVE ON. 1444 00:51:17,280 --> 00:51:18,640 DURING THE CASE PRESENTATIONS BY 1445 00:51:18,640 --> 00:51:20,520 THE HEALTH CENTERS, HERE ARE 1446 00:51:20,520 --> 00:51:22,480 SOME OF THE COMMON THEMES THAT 1447 00:51:22,480 --> 00:51:23,080 EMERGED. 1448 00:51:23,080 --> 00:51:24,960 FEAR, GUILT, SHAME, AND MIXED 1449 00:51:24,960 --> 00:51:26,040 MESSAGES ABOUT ALCOHOL USE 1450 00:51:26,040 --> 00:51:28,240 DURING PREGNANCY. 1451 00:51:28,240 --> 00:51:30,160 CULTURAL ISSUES AND FAMILY 1452 00:51:30,160 --> 00:51:31,680 DYNAMICS WHEN NAVIGATING A 1453 00:51:31,680 --> 00:51:32,880 PRENATAL ALCOHOL EXPOSURE 1454 00:51:32,880 --> 00:51:33,320 HISTORY. 1455 00:51:33,320 --> 00:51:34,720 AND I'LL LET YOU SKIM THE REST 1456 00:51:34,720 --> 00:51:43,960 HERE. 1457 00:51:43,960 --> 00:51:44,600 SAFEST CHOICE OFFERS 1458 00:51:44,600 --> 00:51:47,440 PARTICIPANTS A MENU OF T.A. 1459 00:51:47,440 --> 00:51:49,000 OPTIONS THAT INCLUDE PRACTICE 1460 00:51:49,000 --> 00:51:49,880 IMPROVEMENT STRATEGIES IN THE 1461 00:51:49,880 --> 00:51:51,840 AREAS OF SKILL BASED TRAINING, 1462 00:51:51,840 --> 00:51:53,200 APPROACHES TO SYSTEMS CHANGE 1463 00:51:53,200 --> 00:51:54,960 INCLUDING QUALITY IMPROVEMENT 1464 00:51:54,960 --> 00:51:57,160 STRATEGIES, AND IDENTIFYING AND 1465 00:51:57,160 --> 00:51:58,920 ACCESSING COMMUNITY RESOURCES. 1466 00:51:58,920 --> 00:52:01,880 IN ADDITION TO INDIVIDUAL T.A., 1467 00:52:01,880 --> 00:52:03,080 GROUP-WIDE T.A. SESSIONS ARE 1468 00:52:03,080 --> 00:52:04,520 HELD FOR EACH COHORT ON THE 1469 00:52:04,520 --> 00:52:06,440 TOPICS OF CONTINGENCY 1470 00:52:06,440 --> 00:52:07,320 MANAGEMENT, TREATMENT FOR 1471 00:52:07,320 --> 00:52:11,000 ALCOHOL USE DISORDER, 1472 00:52:11,000 --> 00:52:13,320 MOTIVATIONAL INTERVIEWING, 1473 00:52:13,320 --> 00:52:15,360 DIAGNOSING IN FASD, INCLUDING 1474 00:52:15,360 --> 00:52:16,560 MEASURING FACIAL AND 1475 00:52:16,560 --> 00:52:17,960 NEUROBEHAVIORAL FEATURES, AND A 1476 00:52:17,960 --> 00:52:19,760 MEET YOUR CHAMPIONS PANEL THAT 1477 00:52:19,760 --> 00:52:22,400 INCLUDES PANELISTS FROM FASD 1478 00:52:22,400 --> 00:52:26,320 UNITED, CDC, THE AMERICAN 1479 00:52:26,320 --> 00:52:26,880 COLLEGE OF OBSTETRICIANS AND 1480 00:52:26,880 --> 00:52:28,200 GYNECOLOGISTS, AND THE AMERICAN 1481 00:52:28,200 --> 00:52:33,480 ACADEMY OF PEDIATRICS. 1482 00:52:33,480 --> 00:52:34,880 THE PROGRAM EVALUATION WILL 1483 00:52:34,880 --> 00:52:36,800 ASSESS THE PROCESS OF PROGRAM 1484 00:52:36,800 --> 00:52:38,280 IMPLEMENTATION AND OUTCOMES IN 1485 00:52:38,280 --> 00:52:39,600 THREE DIFFERENT COHORTS OF 1486 00:52:39,600 --> 00:52:41,520 COMMUNITY HEALTH CENTERS. 1487 00:52:41,520 --> 00:52:43,320 EVALUATORS ARE USING A MIXED 1488 00:52:43,320 --> 00:52:45,400 METHODS DESIGN AND A PRE/POST 1489 00:52:45,400 --> 00:52:46,960 STUDY TO EXAMINE PROVIDER 1490 00:52:46,960 --> 00:52:49,800 CHANGES IN FASD KNOWLEDGE, 1491 00:52:49,800 --> 00:52:51,440 SELF-EFFICACY, AND SELF-REPORTED 1492 00:52:51,440 --> 00:52:53,200 PRACTICE BEHAVIORS. 1493 00:52:53,200 --> 00:52:54,680 QUALITATIVE DATA COLLECTION 1494 00:52:54,680 --> 00:52:56,520 STRATEGIES INCLUDE INTERVIEWS, 1495 00:52:56,520 --> 00:52:57,840 FOCUS GROUPS AND PROGRAM 1496 00:52:57,840 --> 00:53:01,560 OBSERVATIONS. 1497 00:53:01,560 --> 00:53:03,080 THIS SLIDE SHOWS SOME 1498 00:53:03,080 --> 00:53:05,440 PRELIMINARY RESULTS OF COHORT 1. 1499 00:53:05,440 --> 00:53:07,480 THE PRE-SURVEY IS INTENDED TO 1500 00:53:07,480 --> 00:53:09,240 PROVIDE BASELINE INFORMATION OF 1501 00:53:09,240 --> 00:53:11,280 PARTICIPANTS' KNOWLEDGE, 1502 00:53:11,280 --> 00:53:12,680 SELF-EFFICACY AND PRACTICE AMONG 1503 00:53:12,680 --> 00:53:15,320 OTHER FACTORS, SUCH AS PROVIDER 1504 00:53:15,320 --> 00:53:16,840 BURNOUT, COVID-19 IMPACT, AND SO 1505 00:53:16,840 --> 00:53:18,880 ON. 1506 00:53:18,880 --> 00:53:20,280 THE PROGRAM PRE-SURVEY IS 1507 00:53:20,280 --> 00:53:23,760 FOLLOWED BY A MIDPOINT, PROGRAM 1508 00:53:23,760 --> 00:53:25,120 POST SURVEY AND THREE-MONTH 1509 00:53:25,120 --> 00:53:26,160 PROGRAM FOLLOW-UP TO PROVIDE 1510 00:53:26,160 --> 00:53:27,360 MEASURES OF IMPACT OF THE 1511 00:53:27,360 --> 00:53:30,920 PROGRAM ON PROVIDER OUTCOMES. 1512 00:53:30,920 --> 00:53:32,200 COHORT 1 HAS COMPLETED SURVEYS 1513 00:53:32,200 --> 00:53:33,320 AT ALL TIME POINTS. 1514 00:53:33,320 --> 00:53:35,040 I AM PLEASED TO REPORT THESE 1515 00:53:35,040 --> 00:53:36,760 VERY SUCCESSFUL PRELIMINARY 1516 00:53:36,760 --> 00:53:39,680 RESULTS FOR COHORT 1. 1517 00:53:39,680 --> 00:53:41,560 100% OF PARTICIPANTS AGREE THAT 1518 00:53:41,560 --> 00:53:43,360 THE PROGRAM INCREASED THEIR 1519 00:53:43,360 --> 00:53:45,240 KNOWLEDGE ABOUT THE HAZARDS OF 1520 00:53:45,240 --> 00:53:46,640 PRENATAL ALCOHOL EXPOSURE AND 1521 00:53:46,640 --> 00:53:48,080 OPTIONS FOR SCREENING FOR 1522 00:53:48,080 --> 00:53:51,840 ALCOHOL USE DURING PREGNANCY. 1523 00:53:51,840 --> 00:53:53,040 92% AGREE THAT THE PROGRAM 1524 00:53:53,040 --> 00:53:53,960 INCREASED THEIR KNOWLEDGE ABOUT 1525 00:53:53,960 --> 00:53:56,920 THE HAZARDS OF AND SCREENING FOR 1526 00:53:56,920 --> 00:53:58,760 PRENATAL ALCOHOL EXPOSURE AMONG 1527 00:53:58,760 --> 00:54:00,080 CHILDREN AND ADOLESCENTS 1528 00:54:00,080 --> 00:54:03,280 SUSPECTED OF HAVING AN FASD. 1529 00:54:03,280 --> 00:54:04,400 AND 100% OF PARTICIPANTS 1530 00:54:04,400 --> 00:54:06,040 REPORTED THAT, TO AT LEAST SOME 1531 00:54:06,040 --> 00:54:07,120 EXTENT, THEY PLAN TO USE THE 1532 00:54:07,120 --> 00:54:08,240 KNOWLEDGE AND SKILLS LEARNED IN 1533 00:54:08,240 --> 00:54:14,840 THIS TRAINING. 1534 00:54:14,840 --> 00:54:15,880 WE LOOK FORWARD TO PRESENTING 1535 00:54:15,880 --> 00:54:18,320 THE ADDITIONAL COHORT OUTCOMES 1536 00:54:18,320 --> 00:54:19,920 IN THE FUTURE. 1537 00:54:19,920 --> 00:54:21,520 DATA SUGGESTING THIS PROVIDER 1538 00:54:21,520 --> 00:54:23,520 TRAINING INCREASES PROVIDER FASD 1539 00:54:23,520 --> 00:54:25,120 KNOWLEDGE AND SELF-EFFICACY AND 1540 00:54:25,120 --> 00:54:26,440 PROMOTES IMPROVEMENTS IN 1541 00:54:26,440 --> 00:54:29,280 CLINICAL PRACTICE. 1542 00:54:29,280 --> 00:54:31,160 WITH THAT, I SAY THANK YOU FOR 1543 00:54:31,160 --> 00:54:32,040 YOUR TIME AND ATTENTION. 1544 00:54:32,040 --> 00:54:33,920 HERE IS MY CONTACT INFORMATION, 1545 00:54:33,920 --> 00:54:35,120 SHOULD YOU HAVE FOLLOW-UP 1546 00:54:35,120 --> 00:54:36,520 QUESTIONS. 1547 00:54:36,520 --> 00:54:38,200 AND WE ENCOURAGE YOU TO CONNECT 1548 00:54:38,200 --> 00:54:39,440 WITH HRSA. 1549 00:54:39,440 --> 00:54:41,720 HRSA IS ON FOUR SOCIAL MEDIA 1550 00:54:41,720 --> 00:54:46,160 PLATFORMS WITH THE ACCOUNT 1551 00:54:46,160 --> 00:54:46,800 HANDLE@HRSA.GOV. 1552 00:54:46,800 --> 00:54:49,200 ALSO PLEASE SIGN UP FOR HRSA'S 1553 00:54:49,200 --> 00:54:50,520 E-NEWS AND RECEIVE OUR PRESS 1554 00:54:50,520 --> 00:54:52,000 RELEASES AND NOTICES OF FUNDING 1555 00:54:52,000 --> 00:54:52,280 OPPORTUNITY. 1556 00:54:52,280 --> 00:54:54,720 YOU CAN ALSO VISIT HRSA.GOV FOR 1557 00:54:54,720 --> 00:54:55,720 MORE DETAILED INFORMATION ABOUT 1558 00:54:55,720 --> 00:54:58,600 OUR PROGRAMS. 1559 00:54:58,600 --> 00:55:08,800 THANK YOU. 1560 00:55:20,080 --> 00:55:21,320 >> HELLO. 1561 00:55:21,320 --> 00:55:23,400 NOW THANK YOU SO MUCH FOR YOUR 1562 00:55:23,400 --> 00:55:24,880 EXCELLENT PRESENTATIONS. 1563 00:55:24,880 --> 00:55:28,360 IT WAS VERY INFORMATIVE. 1564 00:55:28,360 --> 00:55:29,480 IT'S GREAT TO HEAR ABOUT NEW 1565 00:55:29,480 --> 00:55:31,760 PROGRAMS WHICH WE HAVE. 1566 00:55:31,760 --> 00:55:33,680 JUST AGAIN FOR PEOPLE WHO JUST 1567 00:55:33,680 --> 00:55:35,960 RECENTLY JOINED US, I'M TATIANA 1568 00:55:35,960 --> 00:55:37,200 BALACHOVA. 1569 00:55:37,200 --> 00:55:38,480 I'M SCIENTIFIC COORDINATOR AND 1570 00:55:38,480 --> 00:55:41,680 EXECUTIVE SECRETARY OF THE 1571 00:55:41,680 --> 00:55:43,720 ICCFASD, AND I HAVE PRIVILEGE TO 1572 00:55:43,720 --> 00:55:46,640 MODERATE OUR DISCUSSIONS OF 1573 00:55:46,640 --> 00:55:50,160 MEMBERS' REPORTS OF ACTIVITIES 1574 00:55:50,160 --> 00:55:52,040 FROM 2022. 1575 00:55:52,040 --> 00:55:54,520 FIRST I WOULD LIKE TO INTRODUCE 1576 00:55:54,520 --> 00:55:57,920 A COUPLE GUESTS WHO HAVE JOINED 1577 00:55:57,920 --> 00:56:02,320 US THIS MORNING. 1578 00:56:02,320 --> 00:56:04,320 AND WE ALSO HAVE A FEW OTHER 1579 00:56:04,320 --> 00:56:07,600 MEMBERS WHO HAVE JOINED US 1580 00:56:07,600 --> 00:56:08,920 LATER. 1581 00:56:08,920 --> 00:56:10,760 FOR ICCFASD MEMBERS, IF YOU SEE 1582 00:56:10,760 --> 00:56:12,120 I'M SPEAKING TO VIDEOCAST 1583 00:56:12,120 --> 00:56:14,520 PARTICIPANTS NOW, IF YOU SEE 1584 00:56:14,520 --> 00:56:17,480 THAT SOMEONE IS ICCFASD MEMBERS, 1585 00:56:17,480 --> 00:56:20,280 WE DO HAVE INFORMATION ABOUT 1586 00:56:20,280 --> 00:56:22,440 EACH MEMBER INCLUDING 1587 00:56:22,440 --> 00:56:23,600 BIOSKETCHES SO YOU CAN LOOK 1588 00:56:23,600 --> 00:56:25,240 ONLINE FOR THIS INFORMATION. 1589 00:56:25,240 --> 00:56:28,760 I JUST WANTED TO POINT THAT WE 1590 00:56:28,760 --> 00:56:32,160 DO HAVE DR. AMY BOARD WITH US. 1591 00:56:32,160 --> 00:56:33,920 SHE'S A CDC CENTER ON BIRTH 1592 00:56:33,920 --> 00:56:35,200 DEFECTS AND DEVELOPMENTAL 1593 00:56:35,200 --> 00:56:36,560 DISABILITIES. 1594 00:56:36,560 --> 00:56:38,200 SHE'S CO-LEADER OF ICCFASD'S 1595 00:56:38,200 --> 00:56:40,840 WORKING GROUP ON SCREENING AND 1596 00:56:40,840 --> 00:56:41,960 BRIEF INTERVENTION, AND SHE IS 1597 00:56:41,960 --> 00:56:43,520 WITH US TODAY DURING THIS 1598 00:56:43,520 --> 00:56:45,360 MEETING. 1599 00:56:45,360 --> 00:56:49,200 ALSO I WOULD LIKE TO INTRODUCE A 1600 00:56:49,200 --> 00:56:50,920 GUEST WHO WILL SPEAK DURING 1601 00:56:50,920 --> 00:56:53,400 SPECIAL PANEL TODAY, AND AGAIN 1602 00:56:53,400 --> 00:56:57,800 YOU HAVE -- YOU CAN SEE HER 1603 00:56:57,800 --> 00:56:58,800 BIOSKETCH ONLINE. 1604 00:56:58,800 --> 00:57:09,240 IT IS DR. KATHY HOTELLING, 1605 00:57:10,120 --> 00:57:14,240 CO-FOUNDER OF NORTH CAROLINA 1606 00:57:14,240 --> 00:57:15,360 FASD INFORMED GROUP, WHICH IS 1607 00:57:15,360 --> 00:57:17,920 THE ONLY NORTH CAROLINA 1608 00:57:17,920 --> 00:57:19,200 NON-PROFIT DEDICATED TO 1609 00:57:19,200 --> 00:57:25,680 INDIVIDUALS WITH FASD. 1610 00:57:25,680 --> 00:57:28,120 KATHY'S DAUGHTER IS 29 NOW, AND 1611 00:57:28,120 --> 00:57:30,520 SHE WAS DIAGNOSED AT AGE 10. 1612 00:57:30,520 --> 00:57:34,480 AND I HAVE PLEASURE TO KNOW AND 1613 00:57:34,480 --> 00:57:39,760 TO BE ABLE TO MEET KATHY AND HER 1614 00:57:39,760 --> 00:57:40,880 DAUGHTER PREVIOUSLY. 1615 00:57:40,880 --> 00:57:41,640 WELCOME AND THANK YOU SO MUCH 1616 00:57:41,640 --> 00:57:42,440 FOR JOINING US. 1617 00:57:42,440 --> 00:57:45,280 SO WITH THAT, I WOULD LIKE TO -- 1618 00:57:45,280 --> 00:57:46,960 JUST A FEW REMINDERS. 1619 00:57:46,960 --> 00:57:50,000 EVERYBODY WHO IS ON VIDEOCAST, 1620 00:57:50,000 --> 00:57:52,000 PLEASE WOULD APPRECIATE IF YOU 1621 00:57:52,000 --> 00:57:56,600 CAN TURN YOUR CAMERA ON DURING 1622 00:57:56,600 --> 00:57:57,200 DISCUSSION PERIOD. 1623 00:57:57,200 --> 00:57:59,440 ALSO WHEN YOU SPEAK, TURN YOUR 1624 00:57:59,440 --> 00:58:01,200 MIC ON AND TURN IT OFF WHEN YOU 1625 00:58:01,200 --> 00:58:02,520 DON'T SPEAK. 1626 00:58:02,520 --> 00:58:04,440 PEOPLE ON VIDEOCAST, OUR GUESTS 1627 00:58:04,440 --> 00:58:06,480 ON VIDEOCAST, WE'RE HAPPY TO 1628 00:58:06,480 --> 00:58:09,120 HAVE YOU. 1629 00:58:09,120 --> 00:58:12,720 PLEASE, YOU MAY SEE A LITTLE BOX 1630 00:58:12,720 --> 00:58:14,760 WHERE YOU CAN ENTER YOUR LIVE 1631 00:58:14,760 --> 00:58:15,320 FEEDBACK. 1632 00:58:15,320 --> 00:58:16,400 YOU CAN INCLUDE YOUR COMMENTS, 1633 00:58:16,400 --> 00:58:20,200 YOU CAN INCLUDE YOUR QUESTIONS, 1634 00:58:20,200 --> 00:58:22,360 AND WE WILL DO OUR BEST TO BRING 1635 00:58:22,360 --> 00:58:22,640 IT BACK. 1636 00:58:22,640 --> 00:58:26,200 WE HAVE DR. BILL DUNTY AND ME 1637 00:58:26,200 --> 00:58:27,920 ASSIGNED TO TAKE YOUR QUESTIONS 1638 00:58:27,920 --> 00:58:29,040 AND ASK DURING OUR LIVE 1639 00:58:29,040 --> 00:58:29,400 DISCUSSIONS. 1640 00:58:29,400 --> 00:58:32,560 WITH THAT, WE MOVE NOW TO 1641 00:58:32,560 --> 00:58:40,520 DISCUSSION. 1642 00:58:40,520 --> 00:58:42,080 I INVITE QUESTIONS FROM OUR 1643 00:58:42,080 --> 00:58:43,880 MEMBERS AND GUESTS FROM ZOOM. 1644 00:58:43,880 --> 00:58:45,480 WHAT QUESTIONS YOU WOULD LIKE TO 1645 00:58:45,480 --> 00:58:54,160 ASK? 1646 00:58:54,160 --> 00:58:55,840 WHO WOULD LIKE TO GO FIRST? 1647 00:58:55,840 --> 00:58:59,360 >> TATIANA, WE DID RECEIVE A 1648 00:58:59,360 --> 00:59:01,160 QUESTION DURING THE SESSION, 1649 00:59:01,160 --> 00:59:02,960 THOUGH I'M NOT SURE IF IT REALLY 1650 00:59:02,960 --> 00:59:06,600 RELATES TO ANY OF THE 1651 00:59:06,600 --> 00:59:09,240 PRESENTATIONS THAT WE HEARD FROM 1652 00:59:09,240 --> 00:59:10,000 THIS MORNING. 1653 00:59:10,000 --> 00:59:12,040 MAYBE WHILE WE'RE WAITING FOR 1654 00:59:12,040 --> 00:59:14,080 QUESTIONS I COULD AT LEAST POSE 1655 00:59:14,080 --> 00:59:14,360 THAT ONE? 1656 00:59:14,360 --> 00:59:15,280 >> SURE, GO AHEAD. 1657 00:59:15,280 --> 00:59:15,840 >> OKAY. 1658 00:59:15,840 --> 00:59:16,600 LET'S SEE. 1659 00:59:16,600 --> 00:59:21,120 THIS IS A QUESTION FROM -- LOOKS 1660 00:59:21,120 --> 00:59:23,320 LIKE MR. CARL SABBATH. 1661 00:59:23,320 --> 00:59:28,120 AND HE'S WONDERING IF ANYONE IS 1662 00:59:28,120 --> 00:59:32,200 WORKING WITH CAN FASD ON 1663 00:59:32,200 --> 00:59:36,800 FASD-RELATED ISSUES. 1664 00:59:36,800 --> 00:59:39,360 I CAN TAKE A STAB AT THAT AND 1665 00:59:39,360 --> 00:59:40,760 THEN -- IF THERE ARE OTHERS THAT 1666 00:59:40,760 --> 00:59:41,560 WANT TO -- 1667 00:59:41,560 --> 00:59:43,200 >> THANK YOU. 1668 00:59:43,200 --> 00:59:47,680 I CAN -- YEAH, BILL, I CAN 1669 00:59:47,680 --> 00:59:52,080 COMMENT THAT CAN FASD, IT'S 1670 00:59:52,080 --> 00:59:56,720 CANADA FETAL ALCOHOL SPECTRUM 1671 00:59:56,720 --> 00:59:59,760 DISORDERS NETWORK, THEIR WORK 1672 00:59:59,760 --> 01:00:04,200 INCLUDES RESEARCHERS, PRAK 1673 01:00:04,200 --> 01:00:05,400 PRACTITIONERS, GOVERNMENT 1674 01:00:05,400 --> 01:00:09,360 REPRESENTATIVES, PARTNERS ACROSS 1675 01:00:09,360 --> 01:00:13,000 CANADA, AND I JUST CAN COMMENT, 1676 01:00:13,000 --> 01:00:18,560 WE HAVE BEEN COLLABORATING WITH 1677 01:00:18,560 --> 01:00:20,240 CAN FASD AND KNOW VERY WELL THE 1678 01:00:20,240 --> 01:00:23,120 RESEARCH LEADERS, AND ALSO IN 1679 01:00:23,120 --> 01:00:27,360 ADDITION TO WHAT WE HAVE BEEN 1680 01:00:27,360 --> 01:00:28,720 DOING, AND I THINK, BILL, YOU 1681 01:00:28,720 --> 01:00:31,040 WILL PROBABLY COMMENT ON THIS AS 1682 01:00:31,040 --> 01:00:31,920 WELL BECAUSE THERE'S SO MANY 1683 01:00:31,920 --> 01:00:35,320 JOINT RESEARCH PROJECTS, BUT WE 1684 01:00:35,320 --> 01:00:38,600 ALSO HAVE -- TODAY, WE HAVE A 1685 01:00:38,600 --> 01:00:40,200 PANEL AND YOU CAN SEE THAT SOME 1686 01:00:40,200 --> 01:00:43,160 OF OUR PANEL PARTICIPANTS ARE 1687 01:00:43,160 --> 01:00:43,440 FROM CANADA. 1688 01:00:43,440 --> 01:00:45,880 WE HAVE BEEN WORKING VERY 1689 01:00:45,880 --> 01:00:48,440 CLOSELY WITH OUR CANADA 1690 01:00:48,440 --> 01:00:50,800 COLLEAGUES. 1691 01:00:50,800 --> 01:00:52,040 SO IF ANYBODY WANTS TO ADD TO 1692 01:00:52,040 --> 01:00:56,480 THIS, PLEASE GO AHEAD. 1693 01:00:56,480 --> 01:00:59,480 >> I WOULD JUST ADD THAT AS 1694 01:00:59,480 --> 01:01:03,720 TATIANA POINTED OUT, WE DO HAVE 1695 01:01:03,720 --> 01:01:07,480 INFORMATION EXCHANGES BETWEEN 1696 01:01:07,480 --> 01:01:08,560 NIAAA-FUNDED RESEARCHERS AND 1697 01:01:08,560 --> 01:01:11,720 THOSE THAT ARE PARTICIPATING IN 1698 01:01:11,720 --> 01:01:13,440 THE CAN FASD PROGRAM. 1699 01:01:13,440 --> 01:01:16,400 ONE THAT COMES TO MIND IS A 1700 01:01:16,400 --> 01:01:19,520 INTERACTION WITH DR. JOSLIN COOK 1701 01:01:19,520 --> 01:01:21,920 AT CAN FASD, AND SHE'S 1702 01:01:21,920 --> 01:01:26,200 PARTICIPATING IN NIAAA'S 1703 01:01:26,200 --> 01:01:27,760 CONSENSUS EFFORTS, WHICH IS A 1704 01:01:27,760 --> 01:01:29,960 MEETING TO BRING TOGETHER 1705 01:01:29,960 --> 01:01:31,280 RESEARCHERS TO COME UP WITH A 1706 01:01:31,280 --> 01:01:37,920 SINGLE RESEARCH DEFINITION FOR 1707 01:01:37,920 --> 01:01:38,680 NAD. 1708 01:01:38,680 --> 01:01:40,280 THAT'S AN INTERNATIONAL ACTIVITY 1709 01:01:40,280 --> 01:01:44,200 AND DR. COOK IS PART OF THAT. 1710 01:01:44,200 --> 01:01:44,960 >> THANK YOU. 1711 01:01:44,960 --> 01:01:48,880 I SEE A HAND RAISED. 1712 01:01:48,880 --> 01:01:50,320 PLEASE, KATHY, GO AHEAD. 1713 01:01:50,320 --> 01:01:51,880 >> FIRST I PUT UP MY CLAPPING 1714 01:01:51,880 --> 01:01:52,400 HAND. 1715 01:01:52,400 --> 01:01:53,840 I REALIZED THAT WAS NOT MY 1716 01:01:53,840 --> 01:01:55,040 QUESTION HAND. 1717 01:01:55,040 --> 01:01:56,680 THANK YOU FOR THE PRESENTATIONS 1718 01:01:56,680 --> 01:01:58,640 THIS MORNING. 1719 01:01:58,640 --> 01:02:00,960 I HAVE BEEN FOLLOWING CLOSELY 1720 01:02:00,960 --> 01:02:04,520 THE HRSA PROJECT AND LOOK 1721 01:02:04,520 --> 01:02:08,480 FORWARD TO SEE MORE INFORMATION 1722 01:02:08,480 --> 01:02:10,200 AND DATA ON THAT. 1723 01:02:10,200 --> 01:02:12,080 I HAD ONE QUESTION AND ONE 1724 01:02:12,080 --> 01:02:12,560 COMMENT. 1725 01:02:12,560 --> 01:02:14,760 THE QUESTION IS THAT SOMEONE 1726 01:02:14,760 --> 01:02:17,360 MENTIONED A TOOLBOX AND I DIDN'T 1727 01:02:17,360 --> 01:02:20,800 CATCH WHAT THAT TOOLBOX WAS. 1728 01:02:20,800 --> 01:02:23,360 AND THAT WAS, I THINK -- WELL, 1729 01:02:23,360 --> 01:02:24,640 I'M NOT SURE. 1730 01:02:24,640 --> 01:02:28,840 SHARON OR AMANDA MENTIONED THAT. 1731 01:02:28,840 --> 01:02:30,000 >> OKAY. 1732 01:02:30,000 --> 01:02:30,280 THANK YOU. 1733 01:02:30,280 --> 01:02:31,520 >> AND THEN I HAVE A COMMENT 1734 01:02:31,520 --> 01:02:31,960 AFTER THAT. 1735 01:02:31,960 --> 01:02:32,760 THANK YOU. 1736 01:02:32,760 --> 01:02:34,680 >> OKAY, THANK YOU. 1737 01:02:34,680 --> 01:02:39,560 SHARON OR AMANDA? 1738 01:02:39,560 --> 01:02:41,200 SHARON, YOU'RE MUTED. 1739 01:02:41,200 --> 01:02:42,440 PLEASE UNMUTE. 1740 01:02:42,440 --> 01:02:43,320 >> YES. 1741 01:02:43,320 --> 01:02:44,840 THAT'S ONE OF THE THINGS THAT WE 1742 01:02:44,840 --> 01:02:47,160 ARE WORKING -- WAIT A MINUTE. 1743 01:02:47,160 --> 01:02:49,160 SOMETHING HAS GONE WRONG WITH MY 1744 01:02:49,160 --> 01:02:49,920 TECHNOLOGY HERE. 1745 01:02:49,920 --> 01:02:50,640 OKAY. 1746 01:02:50,640 --> 01:02:53,800 WE ARE WORKING WITH SOME STATES, 1747 01:02:53,800 --> 01:02:56,400 WE'RE DEVELOPING SOME APPROACHES 1748 01:02:56,400 --> 01:03:01,240 THAT COULD BE USED BY SOCIAL 1749 01:03:01,240 --> 01:03:02,440 WORKERS WHEN THEY FIRST COME 1750 01:03:02,440 --> 01:03:03,720 INTO CONTACT WITH FAMILIES WHERE 1751 01:03:03,720 --> 01:03:07,280 THERE MAY HAVE BEEN RENATAL 1752 01:03:07,280 --> 01:03:10,040 EXPOSURE TO ALCOHOL. 1753 01:03:10,040 --> 01:03:11,320 AND SO THAT'S ONE OF THE THINGS 1754 01:03:11,320 --> 01:03:14,800 THAT WE'RE TRYING TO DO, IS TO 1755 01:03:14,800 --> 01:03:16,200 DEVELOP A SET OF WHAT YOU WANT 1756 01:03:16,200 --> 01:03:18,600 TO SAY HELPFUL HINTS ON WHAT 1757 01:03:18,600 --> 01:03:21,560 THEY CAN DO, WHAT WOULD BE 1758 01:03:21,560 --> 01:03:24,280 HELPFUL FOR THEM TO DO. 1759 01:03:24,280 --> 01:03:26,200 >> I DON'T KNOW IF YOU'RE AWARE 1760 01:03:26,200 --> 01:03:29,440 OF THE AMERICAN ACADEMY OF 1761 01:03:29,440 --> 01:03:31,320 PEDIATRICS DOES HAVE A VERY 1762 01:03:31,320 --> 01:03:33,640 EXTENSIVE, AND I MEAN DEEP, IT 1763 01:03:33,640 --> 01:03:41,160 GOES REALLY DEEP, INTO FASD AND 1764 01:03:41,160 --> 01:03:44,280 STARTING WITH SCREENING AND 1765 01:03:44,280 --> 01:03:47,800 REASONS TO SCREEN, DIAGNOSIS, ET 1766 01:03:47,800 --> 01:03:49,440 CETERA, TREATMENT, AND IT'S -- I 1767 01:03:49,440 --> 01:03:53,640 WOULD HATE TO SEE THE REPEATING 1768 01:03:53,640 --> 01:03:55,520 OF WORK THAT IS ALREADY OUT 1769 01:03:55,520 --> 01:03:57,480 THERE. 1770 01:03:57,480 --> 01:03:59,240 THERE IS ALSO TIP 58, WHICH I 1771 01:03:59,240 --> 01:04:00,600 BELIEVE -- I THINK IT'S 58, 1772 01:04:00,600 --> 01:04:05,080 WHICH I BELIEVE IS OUT OF PRINT 1773 01:04:05,080 --> 01:04:07,720 NOW, BUT THAT WAS FROM THE 1774 01:04:07,720 --> 01:04:09,360 CENTER FOR FASD EXCELLENCE. 1775 01:04:09,360 --> 01:04:11,680 AND THAT IS WONDERFUL. 1776 01:04:11,680 --> 01:04:15,000 SO I HOPE THAT THAT IS CONSULTED 1777 01:04:15,000 --> 01:04:16,640 ALSO. 1778 01:04:16,640 --> 01:04:20,240 ONE THING THAT I HAVE A COMMENT 1779 01:04:20,240 --> 01:04:21,920 ABOUT, AND THAT IS THAT THE 1780 01:04:21,920 --> 01:04:26,360 SPECIAL ISSUE THAT WAS 1781 01:04:26,360 --> 01:04:29,360 MENTIONED, I AM VERY, VERY 1782 01:04:29,360 --> 01:04:31,760 CONCERNED THAT WE CONTINUE TO 1783 01:04:31,760 --> 01:04:36,120 PUT ALCOHOL INTO JOURNAL 1784 01:04:36,120 --> 01:04:39,720 ARTICLES, DISCUSSIONS, ET 1785 01:04:39,720 --> 01:04:43,040 CETERA, WITH OTHER DRUGS. 1786 01:04:43,040 --> 01:04:46,040 OTHER DRUGS ARE EXTREMELY 1787 01:04:46,040 --> 01:04:48,320 IMPORTANT, AND I KNOW THERE ARE 1788 01:04:48,320 --> 01:04:49,440 TERATOGENS THAT WE CERTAINLY DO 1789 01:04:49,440 --> 01:04:50,760 NOT WANT OUR CHILDREN EXPOSED 1790 01:04:50,760 --> 01:04:53,720 TO, BUT THE REALITY IS, ALL OF 1791 01:04:53,720 --> 01:04:57,920 THOSE TERATOGENS OUTSHINE IN THE 1792 01:04:57,920 --> 01:05:01,400 PUBLIC EYE AND USUALLY THE 1793 01:05:01,400 --> 01:05:03,480 PROFESSIONAL EYE, OUTSHINE 1794 01:05:03,480 --> 01:05:04,080 ALCOHOL. 1795 01:05:04,080 --> 01:05:07,400 AND ALCOHOL IS 1 IN 20. 1796 01:05:07,400 --> 01:05:09,560 THE OTHER TERATOGENS CAN CAUSE 1797 01:05:09,560 --> 01:05:14,000 LEARNING DISABILITIES AND OTHER 1798 01:05:14,000 --> 01:05:16,200 PROBLEMS, BUT NOTHING, NOTHING 1799 01:05:16,200 --> 01:05:19,040 TO THE MAGNITUDE INCLUDING THE 1800 01:05:19,040 --> 01:05:22,440 REALITY OF THE LIFE LONG 1801 01:05:22,440 --> 01:05:23,480 DEVELOPMENTAL DISABILITY, AND 1802 01:05:23,480 --> 01:05:27,240 HAVING A CHILD WHO SUFFERS FROM 1803 01:05:27,240 --> 01:05:32,960 THIS, AND I -- IT'S -- IT'S 1804 01:05:32,960 --> 01:05:34,560 OVERWHELMING, WHAT SHE HAS TO DO 1805 01:05:34,560 --> 01:05:36,440 TO GET THROUGH A DAY. 1806 01:05:36,440 --> 01:05:39,480 AND IN SOME WAYS, SHE IS NOT -- 1807 01:05:39,480 --> 01:05:41,760 IT'S A SPECTRUM, SHE IS NOT AS 1808 01:05:41,760 --> 01:05:43,800 AFFECTED BY OTHER -- AS OTHER 1809 01:05:43,800 --> 01:05:47,320 PEOPLE, BUT THE MORE WE PUT 1810 01:05:47,320 --> 01:05:52,000 EMPHASIS ON OPIOIDS, ET CETERA, 1811 01:05:52,000 --> 01:05:53,640 WE'RE LOSING THE REALITY THAT 1812 01:05:53,640 --> 01:05:56,880 THIS IS A PUBLIC HEALTH CRISIS. 1813 01:05:56,880 --> 01:06:00,080 ALCOHOL IS SOCIALLY ACCEPTABLE. 1814 01:06:00,080 --> 01:06:01,800 AND THE OTHERS AREN'T AND SO 1815 01:06:01,800 --> 01:06:03,960 THEY GET LOTS OF ATTENTION. 1816 01:06:03,960 --> 01:06:05,840 AND THIS WORRIES ME GREATLY. 1817 01:06:05,840 --> 01:06:07,200 I THINK THAT'S WHY WE DON'T HAVE 1818 01:06:07,200 --> 01:06:10,800 THE RESEARCH MONEY FOR IT. 1819 01:06:10,800 --> 01:06:12,120 AND I COULD SAY A LOT MORE BUT 1820 01:06:12,120 --> 01:06:13,760 I'M SUPPOSED TO BE BRIEF. 1821 01:06:13,760 --> 01:06:17,360 >> THANK YOU, KATHY, FOR YOUR 1822 01:06:17,360 --> 01:06:22,920 COMMENT. 1823 01:06:22,920 --> 01:06:25,160 I WANTED TO USE THE TIME WE 1824 01:06:25,160 --> 01:06:28,240 HAVE, A FEW MORE MINUTES, FOR 1825 01:06:28,240 --> 01:06:30,240 DISCUSSION. 1826 01:06:30,240 --> 01:06:32,400 I WANTED TO ASK A QUESTION JUST 1827 01:06:32,400 --> 01:06:32,920 SLIGHTLY DIFFERENT. 1828 01:06:32,920 --> 01:06:40,960 I KNOW THAT -- AND THIS QUESTION 1829 01:06:40,960 --> 01:06:43,520 IS TO YOU FOR CENTERS FOR 1830 01:06:43,520 --> 01:06:45,600 MEDICAID AND MEDICAID SERVICES, 1831 01:06:45,600 --> 01:06:51,560 I KNOW THAT YOU HAVE LONG TERM 1832 01:06:51,560 --> 01:06:55,160 HOME BASED AND COMMUNITY-BASED 1833 01:06:55,160 --> 01:06:57,240 SERVICES, SO A QUESTION ABOUT 1834 01:06:57,240 --> 01:07:00,960 ALSO USE OF OUTCOME DEFINITION 1835 01:07:00,960 --> 01:07:04,200 AND LOOKING AT QUALITY OF LIFE 1836 01:07:04,200 --> 01:07:07,360 FOR PEOPLE AND INDIVIDUALS WITH 1837 01:07:07,360 --> 01:07:09,320 DIFFERENT EXPERIENCES. 1838 01:07:09,320 --> 01:07:18,040 SO I JUST WANTED TO SEE HOW 1839 01:07:18,040 --> 01:07:19,360 FASD, IF YOU HAVE ANY 1840 01:07:19,360 --> 01:07:22,840 INFORMATION HOW THEY HAVE BEEN 1841 01:07:22,840 --> 01:07:23,800 REPRESENTED IN YOUR SERVICES, 1842 01:07:23,800 --> 01:07:26,600 AND IF YOU CAN COMMENT WHAT YOU 1843 01:07:26,600 --> 01:07:29,680 SEE COULD BE DONE FOR QUALITY OF 1844 01:07:29,680 --> 01:07:31,920 LIFE IN ADULTS WITH FASD. 1845 01:07:31,920 --> 01:07:33,440 >> THAT'S A REALLY GOOD QUESTION 1846 01:07:33,440 --> 01:07:36,480 AND I THINK KATHY WHO JUST 1847 01:07:36,480 --> 01:07:38,840 COMMENTED REALLY ADDRESSED A BIG 1848 01:07:38,840 --> 01:07:40,800 ISSUE, WHICH IS THAT THIS IS 1849 01:07:40,800 --> 01:07:42,840 SOMETHING THAT'S REALLY 1850 01:07:42,840 --> 01:07:44,600 UNDERDIAGNOSED AND OFTEN 1851 01:07:44,600 --> 01:07:45,120 MISDIAGNOSED. 1852 01:07:45,120 --> 01:07:47,880 WE'RE SEEING RIGHT NOW IN OUR 1853 01:07:47,880 --> 01:07:51,960 PEDIATRIC PROGRAM THAT KIDS WHO 1854 01:07:51,960 --> 01:07:55,800 HAVE SYMPTOMS OF AUTISM SPECTRUM 1855 01:07:55,800 --> 01:07:58,360 DISORDER OR ATTENTION 1856 01:07:58,360 --> 01:07:59,200 HYPERACTIVITY DISORDER ARE NOT 1857 01:07:59,200 --> 01:08:04,240 BEING SCREENED FOR FASD MUCH OF 1858 01:08:04,240 --> 01:08:04,480 THE TIME. 1859 01:08:04,480 --> 01:08:06,040 I THINK BECAUSE OF A LOT OF THE 1860 01:08:06,040 --> 01:08:10,680 STIGMA AROUND IT OR BECAUSE OF 1861 01:08:10,680 --> 01:08:12,720 UNFAMILIARITY OR DIFFICULTY WITH 1862 01:08:12,720 --> 01:08:13,360 THE DIAGNOSIS. 1863 01:08:13,360 --> 01:08:14,560 IT'S NOT AN AREA THAT'S PAID 1864 01:08:14,560 --> 01:08:15,720 ATTENTION TO THE WAY THAT IT 1865 01:08:15,720 --> 01:08:16,840 SHOULD BE ACROSS THE BOARD, YOU 1866 01:08:16,840 --> 01:08:19,680 KNOW, NOT LIMITED TO CMS AT ALL. 1867 01:08:19,680 --> 01:08:22,800 IF PEOPLE HAVE SOME KIND OF 1868 01:08:22,800 --> 01:08:27,520 COVERAGE RELATED TO DISABILITY, 1869 01:08:27,520 --> 01:08:28,800 THEIR SERVICES WOULD BE COVERED, 1870 01:08:28,800 --> 01:08:30,240 BUT THERE'S NOTHING THAT'S GOING 1871 01:08:30,240 --> 01:08:33,200 ON AT CMS RIGHT NOW SPECIFICALLY 1872 01:08:33,200 --> 01:08:34,160 TRACKING FASD OR ADULTS WITH 1873 01:08:34,160 --> 01:08:34,560 FASD. 1874 01:08:34,560 --> 01:08:37,080 I DON'T KNOW WHETHER AMANDA FROM 1875 01:08:37,080 --> 01:08:40,080 THE ASSOCIATION FOR COMMUNITY 1876 01:08:40,080 --> 01:08:42,120 LIVING HAS FURTHER INFORMATION 1877 01:08:42,120 --> 01:08:43,200 ABOUT THAT, IN THINKING ABOUT 1878 01:08:43,200 --> 01:08:44,840 HOW WE'RE SUPPORTING ADULTS WITH 1879 01:08:44,840 --> 01:08:45,920 DISABILITIES IN THE COMMUNITY, 1880 01:08:45,920 --> 01:08:47,600 BUT SHE MAY ACTUALLY HAVE A LOT 1881 01:08:47,600 --> 01:08:51,000 MORE INFORMATION THAN WE DO. 1882 01:08:51,000 --> 01:08:52,880 AMANDA, SORRY TO PUT YOU ON THE 1883 01:08:52,880 --> 01:08:53,080 SPOT. 1884 01:08:53,080 --> 01:08:55,040 >> UNFORTUNATELY WE DON'T HAVE 1885 01:08:55,040 --> 01:08:57,760 ANYTHING THAT'S SPECIFIC TO FASD 1886 01:08:57,760 --> 01:08:59,160 CURRENTLY. 1887 01:08:59,160 --> 01:09:04,200 I DEFINITELY AM CHAMPIONING THE 1888 01:09:04,200 --> 01:09:06,480 IDEA THAT FASD NEEDS MORE 1889 01:09:06,480 --> 01:09:09,640 ATTENTION FROM ACL SPECIFICALLY. 1890 01:09:09,640 --> 01:09:11,200 BUT NO, UNFORTUNATELY WE DON'T 1891 01:09:11,200 --> 01:09:12,800 HAVE ANYTHING THAT IS SPECIFIC 1892 01:09:12,800 --> 01:09:17,280 AT THIS POINT. 1893 01:09:17,280 --> 01:09:18,680 >> ALL RIGHT. 1894 01:09:18,680 --> 01:09:21,000 THANK YOU. 1895 01:09:21,000 --> 01:09:22,200 THANK YOU, SHARON, YOU'RE 1896 01:09:22,200 --> 01:09:23,160 RAISING YOUR HAND? 1897 01:09:23,160 --> 01:09:25,440 >> YEAH, I JUST WANTED TO SAY 1898 01:09:25,440 --> 01:09:26,880 THAT AT THE CHILDREN'S BUREAU, 1899 01:09:26,880 --> 01:09:28,520 ONE OF THE THINGS THAT I AM 1900 01:09:28,520 --> 01:09:30,400 WORKING ON, AS I SAID BEFORE, 1901 01:09:30,400 --> 01:09:32,960 WE'RE WORKING ON THIS WITH THE 1902 01:09:32,960 --> 01:09:35,440 CDC, WITH OUR PARTNER, THE CDC, 1903 01:09:35,440 --> 01:09:41,640 WE ARE TRYING TO END UP WITH A 1904 01:09:41,640 --> 01:09:50,640 DATA COLLECTION ABILITY ON FASD. 1905 01:09:50,640 --> 01:09:52,040 SO ONE OF THE TROUBLES IS IT'S 1906 01:09:52,040 --> 01:09:53,120 DIFFICULT AT THE VERY START WHEN 1907 01:09:53,120 --> 01:09:54,600 KIDS COME TO THE ATTENTION OF 1908 01:09:54,600 --> 01:09:55,640 THE CHILD WELFARE SYSTEM, IT'S 1909 01:09:55,640 --> 01:09:57,840 VERY DIFFICULT TO ASK THE RIGHT 1910 01:09:57,840 --> 01:09:59,920 QUESTION. 1911 01:09:59,920 --> 01:10:03,920 AND SO THAT'S ONE OF THE 1912 01:10:03,920 --> 01:10:04,960 PROBLEMS THAT WE HAVE, BUT WE 1913 01:10:04,960 --> 01:10:06,080 ARE WORKING WITH THAT AND WE 1914 01:10:06,080 --> 01:10:07,760 WOULD HOPE TO EVENTUALLY HAVE, 1915 01:10:07,760 --> 01:10:10,640 AS PART OF OUR DATA COLLECTION 1916 01:10:10,640 --> 01:10:15,160 SYSTEMS, WE HAVE THE ADOPTION 1917 01:10:15,160 --> 01:10:16,520 FOSTER CARE ANALYSIS AND 1918 01:10:16,520 --> 01:10:20,480 REPORTING SYSTEM OR AFCARS, AND 1919 01:10:20,480 --> 01:10:22,000 ALSO THE NATIONAL CHILD ABUSE 1920 01:10:22,000 --> 01:10:23,480 AND NEGLECT DATA SYSTEM, AND WE 1921 01:10:23,480 --> 01:10:26,520 WOULD LIKE TO HAVE THOSE HAVE 1922 01:10:26,520 --> 01:10:27,760 THIS INFORMATION ON WHETHER OR 1923 01:10:27,760 --> 01:10:29,400 NOT THIS CHILD HAS BEEN 1924 01:10:29,400 --> 01:10:32,520 PRENATALLY EXPOSED TO ALCOHOL. 1925 01:10:32,520 --> 01:10:35,080 BUT WE DON'T HAVE EXACTLY THE 1926 01:10:35,080 --> 01:10:36,480 RIGHT INFORMATION IN OUR DATA 1927 01:10:36,480 --> 01:10:37,560 SYSTEMS TO DO THAT. 1928 01:10:37,560 --> 01:10:43,920 BUT WE'RE WORKING ON IT. 1929 01:10:43,920 --> 01:10:47,040 >> ALL RIGHT, THANK YOU, SHARON, 1930 01:10:47,040 --> 01:10:47,520 FOR YOUR COMMENT. 1931 01:10:47,520 --> 01:10:49,080 I KNOW THERE ARE A FEW QUESTIONS 1932 01:10:49,080 --> 01:10:51,720 FROM VIDEOCAST. 1933 01:10:51,720 --> 01:10:52,520 CAN WE HAVE -- 1934 01:10:52,520 --> 01:10:54,680 >> YEAH, HI, TATIANA. 1935 01:10:54,680 --> 01:11:02,520 SO WE HAVE A QUESTION. 1936 01:11:02,520 --> 01:11:06,240 FROM JACKIE WILLIE, DAWN, THIS 1937 01:11:06,240 --> 01:11:07,240 MIGHT BE A QUESTION FOR YOU TO 1938 01:11:07,240 --> 01:11:07,560 ANSWER. 1939 01:11:07,560 --> 01:11:11,920 HER QUESTION IS, ORCHIDS FASD 1940 01:11:11,920 --> 01:11:13,120 SERVICES OF WISCONSIN WORKED FOR 1941 01:11:13,120 --> 01:11:14,600 A YEAR TO TRY TO GET A PRENATAL 1942 01:11:14,600 --> 01:11:17,520 OR PEDIATRIC CLINIC IN THE STATE 1943 01:11:17,520 --> 01:11:19,840 OF WISCONSIN TO JOIN THE SAFEST 1944 01:11:19,840 --> 01:11:20,840 CHOICE LEARNING COLLABORATIVE 1945 01:11:20,840 --> 01:11:23,240 AND THEY HAD NO TAKERS. 1946 01:11:23,240 --> 01:11:24,960 AND SHE'S ASKING, IS THERE ANY 1947 01:11:24,960 --> 01:11:27,480 SUGGESTION ON HOW TO OVERCOME 1948 01:11:27,480 --> 01:11:31,160 THIS LACK OF INTEREST ABOUT FASD 1949 01:11:31,160 --> 01:11:32,560 IN WISCONSIN? 1950 01:11:32,560 --> 01:11:36,440 OR IN OTHER STATES. 1951 01:11:36,440 --> 01:11:38,160 >> THANK YOU, BILL, AND THANK 1952 01:11:38,160 --> 01:11:41,720 YOU, JACKIE, FOR THIS QUESTION. 1953 01:11:41,720 --> 01:11:44,360 WHAT I MIGHT SUGGEST IS, IF IT'S 1954 01:11:44,360 --> 01:11:49,200 ALL RIGHT WITH YOU, I CAN REPLY 1955 01:11:49,200 --> 01:11:51,000 VIA EMAIL TO THE SAFEST CHOICE 1956 01:11:51,000 --> 01:11:51,640 LEARNING COLLABORATIVE. 1957 01:11:51,640 --> 01:11:53,640 I THINK IT MIGHT BE USEFUL TO 1958 01:11:53,640 --> 01:11:55,520 TALK TO THEM TO DO JUST A QUICK 1959 01:11:55,520 --> 01:11:57,080 CONSULTATION TO GET SOME 1960 01:11:57,080 --> 01:11:58,360 TAILORED -- MAYBE TAILORED 1961 01:11:58,360 --> 01:12:00,680 MESSAGING THAT MIGHT BE 1962 01:12:00,680 --> 01:12:04,800 APPROPRIATE FOR PROVIDERS IN 1963 01:12:04,800 --> 01:12:05,640 WISCONSIN. 1964 01:12:05,640 --> 01:12:07,520 I THINK IT'S ALSO IMPORTANT TO 1965 01:12:07,520 --> 01:12:08,840 MENTION, YOU KNOW, JUST KIND OF 1966 01:12:08,840 --> 01:12:12,320 AS AN INCENTIVE SO TO SPEAK IS 1967 01:12:12,320 --> 01:12:16,040 THAT THIS PROGRAM DOES PROVIDE 1968 01:12:16,040 --> 01:12:18,360 INTERPROFESSIONAL CONTINUING 1969 01:12:18,360 --> 01:12:23,240 EDUCATION CREDIT FOR THE 1970 01:12:23,240 --> 01:12:25,640 PROVIDERS. 1971 01:12:25,640 --> 01:12:30,080 IT ALSO -- OKAY. 1972 01:12:30,080 --> 01:12:30,720 SORRY. 1973 01:12:30,720 --> 01:12:34,040 IT ALSO INCLUDES TECHNICAL 1974 01:12:34,040 --> 01:12:37,680 ASSISTANCE, A CERTIFICATE OF 1975 01:12:37,680 --> 01:12:39,840 COMPLETION, WHICH PROVIDERS 1976 01:12:39,840 --> 01:12:41,440 COULD FIND USEFUL TO KIND OF 1977 01:12:41,440 --> 01:12:42,760 DISTINGUISH THEIR CLINIC, AND 1978 01:12:42,760 --> 01:12:45,480 THEN THE OTHER THING THAT SAFEST 1979 01:12:45,480 --> 01:12:46,480 CHOICE DOES, THAT THE PROGRAM 1980 01:12:46,480 --> 01:12:49,760 DOES TO HELP KEEP PROVIDERS 1981 01:12:49,760 --> 01:12:51,480 ENGAGED IS THEY ADMINISTER A 1982 01:12:51,480 --> 01:12:53,800 BASELINE NEEDS ASSESSMENT, THEY 1983 01:12:53,800 --> 01:12:55,200 CREATE A CONFIRMATION OF 1984 01:12:55,200 --> 01:12:58,880 COMMITMENT LETTER TO KEEP THEM 1985 01:12:58,880 --> 01:13:00,040 ENGAGED, AND THEN THEY MEET WITH 1986 01:13:00,040 --> 01:13:02,440 CLINICS ON AN ONGOING BASIS FOR 1987 01:13:02,440 --> 01:13:02,960 CHECK-IN. 1988 01:13:02,960 --> 01:13:04,000 I GUESS WHAT I WOULD SAY IS 1989 01:13:04,000 --> 01:13:05,200 BECAUSE THERE'S BEEN GREAT 1990 01:13:05,200 --> 01:13:08,120 DEMAND FOR THIS PROGRAM, AND IN 1991 01:13:08,120 --> 01:13:14,160 OTHER AREAS, THIS PARTICULAR 1992 01:13:14,160 --> 01:13:16,040 PROGRAM PROVIDES SOME LEVEL OF 1993 01:13:16,040 --> 01:13:17,320 EXPERTISE AND TECHNICAL 1994 01:13:17,320 --> 01:13:18,520 ASSISTANCE THAT PRACTICES 1995 01:13:18,520 --> 01:13:20,360 WOULDN'T OTHERWISE BE ABLE TO 1996 01:13:20,360 --> 01:13:21,120 OBTAIN. 1997 01:13:21,120 --> 01:13:23,280 SO AGAIN, I'M HAPPY TO FOLLOW UP 1998 01:13:23,280 --> 01:13:25,040 VIA EMAIL TO CONNECT YOU TO GET 1999 01:13:25,040 --> 01:13:27,880 SOME TAILORED MESSAGING FROM THE 2000 01:13:27,880 --> 01:13:28,320 STATE OF WISCONSIN. 2001 01:13:28,320 --> 01:13:30,200 THANK YOU. 2002 01:13:30,200 --> 01:13:31,360 >> THANK YOU. 2003 01:13:31,360 --> 01:13:33,880 WE ARE SLIGHTLY BEHIND OF TIME, 2004 01:13:33,880 --> 01:13:36,680 WHICH WE ESTIMATED, WE WANT TO 2005 01:13:36,680 --> 01:13:37,480 TAKE A LITTLE BREAK. 2006 01:13:37,480 --> 01:13:40,080 WE HAVE A COUPLE MINUTES, IF WE 2007 01:13:40,080 --> 01:13:41,520 CAN HAVE ONE QUESTION, BILL, I 2008 01:13:41,520 --> 01:13:44,480 THINK YOU HAVE ANOTHER QUESTION 2009 01:13:44,480 --> 01:13:47,720 FROM VIDEOCAST. 2010 01:13:47,720 --> 01:13:49,800 LET TAKE ONE AND THEN WE WILL 2011 01:13:49,800 --> 01:13:53,360 HAVE JUST VERY BRIEF 5-MINUTES 2012 01:13:53,360 --> 01:13:53,560 BREAK. 2013 01:13:53,560 --> 01:13:54,080 >> SURE. 2014 01:13:54,080 --> 01:13:55,760 SO THIS QUESTION IS FROM KELLY 2015 01:13:55,760 --> 01:14:00,920 HENDERSON. 2016 01:14:00,920 --> 01:14:02,440 AND SHE WRITES GOOD MORNING, I 2017 01:14:02,440 --> 01:14:04,280 APOLOGIZE IF I MISSED THIS IN 2018 01:14:04,280 --> 01:14:05,920 THE INTRODUCTION BUT ARE THERE 2019 01:14:05,920 --> 01:14:07,240 OTHER FEDERAL PARTNERS IN THE 2020 01:14:07,240 --> 01:14:10,720 ICCFASD THAT ARE NOT REPRESENTED 2021 01:14:10,720 --> 01:14:12,160 HERE TODAY? 2022 01:14:12,160 --> 01:14:14,600 IN PARTICULAR, THE DEPARTMENT OF 2023 01:14:14,600 --> 01:14:16,200 EDUCATION, AND/OR THE DEPARTMENT 2024 01:14:16,200 --> 01:14:24,080 OF JUSTICE. 2025 01:14:24,080 --> 01:14:27,880 >> THANK YOU. 2026 01:14:27,880 --> 01:14:29,040 TRISH, WOULD YOU LIKE TO TAKE 2027 01:14:29,040 --> 01:14:31,160 THIS QUESTION? 2028 01:14:31,160 --> 01:14:32,880 >> I'M SORRY, COULD YOU REPEAT 2029 01:14:32,880 --> 01:14:33,360 THAT, BILL? 2030 01:14:33,360 --> 01:14:34,600 I WAS LOOKING, THERE'S ANOTHER 2031 01:14:34,600 --> 01:14:35,800 QUESTION IN THE MEETING CHAT 2032 01:14:35,800 --> 01:14:37,440 THAT I WAS MAKING SURE WE DIDN'T 2033 01:14:37,440 --> 01:14:38,000 SKIP. 2034 01:14:38,000 --> 01:14:39,680 >> OKAY. 2035 01:14:39,680 --> 01:14:41,640 LET ME ANSWER. 2036 01:14:41,640 --> 01:14:49,080 I'M SORRY, BUT PATIENT WAS ABOUT 2037 01:14:49,080 --> 01:14:50,040 DEPARTMENT OF EDUCATION AND 2038 01:14:50,040 --> 01:14:52,800 DEPARTMENT OF JUSTICE, IF THEY 2039 01:14:52,800 --> 01:14:54,240 PARTICIPATE ON COMMITTEE NOW. 2040 01:14:54,240 --> 01:14:55,320 UNFORTUNATELY WE DON'T HAVE 2041 01:14:55,320 --> 01:14:56,840 REPRESENTATIVES FROM THOSE 2042 01:14:56,840 --> 01:14:59,120 DEPARTMENTS, AND ICCFASD AT THIS 2043 01:14:59,120 --> 01:14:59,520 TIME. 2044 01:14:59,520 --> 01:15:02,760 WE DID HAVE REPRESENTATIVES FROM 2045 01:15:02,760 --> 01:15:04,720 BOTH DEPARTMENTS PREVIOUSLY AND 2046 01:15:04,720 --> 01:15:08,000 THEY HAVE BEEN VERY 2047 01:15:08,000 --> 01:15:10,360 SIGNIFICANTLY INVOLVED WITH 2048 01:15:10,360 --> 01:15:14,080 ICCFASD AND PARTICIPATED ON 2049 01:15:14,080 --> 01:15:15,640 WORKING GROUPS AND MADE 2050 01:15:15,640 --> 01:15:16,160 SIGNIFICANT IMPACT. 2051 01:15:16,160 --> 01:15:17,440 WE HOPE THEY WILL JOIN BUT THEY 2052 01:15:17,440 --> 01:15:18,640 HAVE NOT JOINED YET. 2053 01:15:18,640 --> 01:15:21,400 SO WE LOOK FORWARD AND WE REALLY 2054 01:15:21,400 --> 01:15:23,560 WOULD LIKE THEM TO JOIN AND 2055 01:15:23,560 --> 01:15:24,880 PARTICIPATE TOGETHER. 2056 01:15:24,880 --> 01:15:29,280 SO WITH THAT, LET ME BREAK FOR 2057 01:15:29,280 --> 01:15:29,800 BREAK. 2058 01:15:29,800 --> 01:15:31,760 SO IT'S 11:15 NOW. 2059 01:15:31,760 --> 01:15:33,480 WE HAVE FIVE-MINUTES BREAK, 2060 01:15:33,480 --> 01:15:36,120 PLEASE, AND COME BACK AT 11:20, 2061 01:15:36,120 --> 01:15:40,040 WE WILL CONTINUE AGENCIES' 2062 01:15:40,040 --> 01:15:40,400 PRESENTATIONS. 2063 01:15:40,400 --> 01:15:44,880 THANK YOU. 2064 01:15:44,880 --> 01:15:45,680 WE'LL CONTINUE WITH 2065 01:15:45,680 --> 01:15:47,000 PRESENTATIONS FROM AGENCIES 2066 01:15:47,000 --> 01:15:48,440 RIGHT NOW AND WE WILL CONTINUE 2067 01:15:48,440 --> 01:15:49,720 WITH DISCUSSION AFTER THE 2068 01:15:49,720 --> 01:15:50,920 SEGMENT OF PRESENTATIONS. 2069 01:15:50,920 --> 01:15:52,600 OUR AGENDA IS ONLINE. 2070 01:15:52,600 --> 01:15:54,000 PLEASE LOOK AT THE AGENDA. 2071 01:15:54,000 --> 01:15:55,600 WE'LL FOLLOW THE AGENDA AND TRY 2072 01:15:55,600 --> 01:15:56,400 TO STAY ON TIME. 2073 01:15:56,400 --> 01:15:57,320 THANK YOU SO MUCH. 2074 01:15:57,320 --> 01:16:01,400 WITH THAT, I TURN TO SHIN KIM OF 2075 01:16:01,400 --> 01:16:17,040 CDC. 2076 01:16:17,040 --> 01:16:20,200 MY NAME IS SHIN KIM AND I'M THE 2077 01:16:20,200 --> 01:16:26,760 TEAM LEAD FO IN THE DIVISION OF 2078 01:16:26,760 --> 01:16:29,600 BIRTH DEFECTS AND INFANT 2079 01:16:29,600 --> 01:16:29,840 DISORDERS. 2080 01:16:29,840 --> 01:16:33,080 TODAY I WILL BE HIGHLIGHTING THE 2081 01:16:33,080 --> 01:16:33,960 CDC ACTIVITIES. 2082 01:16:33,960 --> 01:16:35,440 FIRST I'LL BE STARTING WITH OUR 2083 01:16:35,440 --> 01:16:39,880 SURVEILLANCE WORK. 2084 01:16:39,880 --> 01:16:40,920 POLYSUBSTANCE USE IS COMMON 2085 01:16:40,920 --> 01:16:41,480 DURING PREGNANCY. 2086 01:16:41,480 --> 01:16:43,320 MORE THAN HALF OF PREGNANT WOMEN 2087 01:16:43,320 --> 01:16:45,720 WHO USED OPIOIDS FOR NON-MEDICAL 2088 01:16:45,720 --> 01:16:47,120 REASONS REPORTED DRINKING 2089 01:16:47,120 --> 01:16:48,320 ALCOHOL. 2090 01:16:48,320 --> 01:16:50,520 AND 74% OF WOMEN WHO CONTINUED 2091 01:16:50,520 --> 01:16:51,840 MARIJUANA USE BEFORE AND DURING 2092 01:16:51,840 --> 01:16:52,920 PREGNANCY ALSO SMOKED 2093 01:16:52,920 --> 01:16:59,120 CIGARETTES. 2094 01:16:59,120 --> 01:17:01,520 A SYSTEMATIC REVIEW RECENTLY 2095 01:17:01,520 --> 01:17:04,920 PUBLISHED BY CDC AUTHORS FOUND 2096 01:17:04,920 --> 01:17:06,520 THERE'S WIDE VARIATION IN U.S. 2097 01:17:06,520 --> 01:17:09,200 STUDIES ON POLYSUBSTANCE USE 2098 01:17:09,200 --> 01:17:09,840 DURING PREGNANCY THAT CAN 2099 01:17:09,840 --> 01:17:11,360 CONTRIBUTE TO WIDE PREVALENCE 2100 01:17:11,360 --> 01:17:11,920 ESTIMATES. 2101 01:17:11,920 --> 01:17:13,640 FUTURE EFFORTS TO CONSISTENTLY 2102 01:17:13,640 --> 01:17:15,080 DEFINE THE EXPOSURE AND BETTER 2103 01:17:15,080 --> 01:17:18,000 UNDERSTAND THE FACTORS THAT 2104 01:17:18,000 --> 01:17:20,800 INFLUENCE POLYSUBSTANCE USE IS 2105 01:17:20,800 --> 01:17:23,680 NEEDED. 2106 01:17:23,680 --> 01:17:29,560 WE CONTINUE TO ANALYZE DATA ON 2107 01:17:29,560 --> 01:17:31,000 ALCOHOL USE AND ALCOHOL 2108 01:17:31,000 --> 01:17:33,800 SCREENING AND BRIEF INTERVENTION 2109 01:17:33,800 --> 01:17:35,200 UTILIZATION INCLUDING THE 2110 01:17:35,200 --> 01:17:36,560 BEHAVIORAL RISK FACTOR 2111 01:17:36,560 --> 01:17:37,520 SURVEILLANCE SYSTEM, THE 2112 01:17:37,520 --> 01:17:38,720 NATIONAL SURVEY ON DRUG USE AND 2113 01:17:38,720 --> 01:17:39,920 HEALTH, THE PREGNANCY RISK 2114 01:17:39,920 --> 01:17:43,440 ASSESSMENT MONITORING SYSTEM. 2115 01:17:43,440 --> 01:17:45,280 IN A RECENT MMWR PUBLISHED IN 2116 01:17:45,280 --> 01:17:47,800 JANUARY OF THIS YEAR, WE EXAMINE 2117 01:17:47,800 --> 01:17:49,880 EXPERIENCES DURING PEOPLE'S MOST 2118 01:17:49,880 --> 01:17:50,520 RECENT HEALTHCARE VISIT WITHIN 2119 01:17:50,520 --> 01:17:52,800 THE PAST TWO YEARS, AND FOUND 2120 01:17:52,800 --> 01:17:54,880 THAT 80% OF PEOPLE WHO WERE 2121 01:17:54,880 --> 01:17:55,960 PREGNANT WERE ASKED ABOUT 2122 01:17:55,960 --> 01:17:57,520 ALCOHOL USE. 2123 01:17:57,520 --> 01:17:59,640 HOWEVER, OF THOSE WHO REPORTED 2124 01:17:59,640 --> 01:18:03,080 CURRENT DRINKING, ONLY 16% WERE 2125 01:18:03,080 --> 01:18:04,280 ADVISED TO QUIT OR REDUCE THEIR 2126 01:18:04,280 --> 01:18:06,000 USE. 2127 01:18:06,000 --> 01:18:09,600 THESE FINDINGS HIGHLIGHT MISSED 2128 01:18:09,600 --> 01:18:10,600 OPPORTUNITIES FOR EDUCATION IN 2129 01:18:10,600 --> 01:18:12,360 ALCOHOL SCREENING AND UTILIZE 2130 01:18:12,360 --> 01:18:13,800 STRATEGIES TO ADDRESS, RECOGNIZE 2131 01:18:13,800 --> 01:18:15,520 BARRIERS, AND TO HELP EXPAND 2132 01:18:15,520 --> 01:18:17,040 PREVENTION OF ALCOHOL USE DURING 2133 01:18:17,040 --> 01:18:26,040 PREGNANCY. 2134 01:18:26,040 --> 01:18:27,320 NEXT I'LL TALK ABOUT AWARENESS 2135 01:18:27,320 --> 01:18:31,160 AND PREVENTION ACTIVITIES. 2136 01:18:31,160 --> 01:18:32,560 TO ADDRESS CONCERNS RELATED TO 2137 01:18:32,560 --> 01:18:35,080 ALCOHOL SCREENING AND BRIEF 2138 01:18:35,080 --> 01:18:36,520 INTERVENTION, THE INTERAGENCY 2139 01:18:36,520 --> 01:18:37,800 COORDINATING COMMITTEE ON FETAL 2140 01:18:37,800 --> 01:18:41,080 ALCOHOL SPECTRUM DISORDERS, OR 2141 01:18:41,080 --> 01:18:44,680 ICCFASD, DEVELOPED A NEW WORKING 2142 01:18:44,680 --> 01:18:48,200 GROUP TO LOOK AT SCREENING AND 2143 01:18:48,200 --> 01:18:49,960 BRIEF INTERVENTION ACTIVITIES TO 2144 01:18:49,960 --> 01:18:51,480 EXCHANGE INFORMATION AND 2145 01:18:51,480 --> 01:18:52,320 RESOURCES, IDENTIFY GAPS AND 2146 01:18:52,320 --> 01:18:53,880 OPPORTUNITIES FOR IMPROVED 2147 01:18:53,880 --> 01:18:55,840 IMPLEMENTATION AND RESEARCH, AND 2148 01:18:55,840 --> 01:18:57,120 EXPAND COLLABORATION AND 2149 01:18:57,120 --> 01:18:59,240 PARTNERSHIP BETWEEN FEDERAL 2150 01:18:59,240 --> 01:19:00,320 AGENCIES RELATED TO SCREENING 2151 01:19:00,320 --> 01:19:01,840 AND BRIEF INTERVENTION SERVICES 2152 01:19:01,840 --> 01:19:03,800 AND REFERRAL TO TREATMENT WHEN 2153 01:19:03,800 --> 01:19:05,240 NECESSARY FOR PREGNANT AND 2154 01:19:05,240 --> 01:19:06,360 POSTPARTUM PEOPLE. 2155 01:19:06,360 --> 01:19:07,840 THIS COLLABORATIVE EFFORT IS IN 2156 01:19:07,840 --> 01:19:09,880 LINE WITH ONE OF THE ICCFASD'S 2157 01:19:09,880 --> 01:19:13,320 PRIORITY AREAS TO REDUCE ALCOHOL 2158 01:19:13,320 --> 01:19:16,880 USE EXPOSURE AND PREVALENCE OF 2159 01:19:16,880 --> 01:19:18,920 FETAL ALCOHOL SPECTRUM DISORDERS 2160 01:19:18,920 --> 01:19:21,840 AMONG U.S. CHILDREN. 2161 01:19:21,840 --> 01:19:23,440 CDC CURRENTLY HAS COOPERATIVE 2162 01:19:23,440 --> 01:19:24,840 AGREEMENTS IN PLACE WITH FOUR 2163 01:19:24,840 --> 01:19:27,120 HEALTH SYSTEMS OR UNIVERSITIES. 2164 01:19:27,120 --> 01:19:29,440 THESE PROJECTS FOCUS ON ALCOHOL 2165 01:19:29,440 --> 01:19:32,040 SCREENING AND BRIEF INTERVENTION 2166 01:19:32,040 --> 01:19:33,560 IMPLEMENTATION WITHIN HEALTH 2167 01:19:33,560 --> 01:19:34,680 SYSTEMS, PROVIDING WOMEN'S 2168 01:19:34,680 --> 01:19:36,960 HEALTH SERVICES WITH THE AIM OF 2169 01:19:36,960 --> 01:19:38,920 REDUCING EXCESSIVE ALCOHOL USE 2170 01:19:38,920 --> 01:19:41,880 AMONG WOMEN OF REPRODUCTIVE AGE. 2171 01:19:41,880 --> 01:19:43,200 SOME RESULTS OF THESE EFFORTS 2172 01:19:43,200 --> 01:19:44,960 INCLUDE IMPLEMENTATION OF 2173 01:19:44,960 --> 01:19:48,760 ALCOHOL SBI INTO 53 CENTERS IN A 2174 01:19:48,760 --> 01:19:52,440 VARIETY OF SETTINGS, TRAINING 2175 01:19:52,440 --> 01:19:54,240 1,259 CLINICAL STAFF ON SBI 2176 01:19:54,240 --> 01:19:56,520 DELIVERY AND IMPLEMENTATION, 2177 01:19:56,520 --> 01:19:58,680 SCREENING OVER 120,000 PATIENTS 2178 01:19:58,680 --> 01:20:01,520 FOR ALCOHOL USE, IMPLEMENTING 2179 01:20:01,520 --> 01:20:03,080 SBI IN DIFFERENT SETTINGS AND 2180 01:20:03,080 --> 01:20:05,120 MANAGEMENT STRUCTURES, 2181 01:20:05,120 --> 01:20:08,200 LEVERAGING TECHNOLOGY TO ENHANCE 2182 01:20:08,200 --> 01:20:10,160 ALCOHOL SCREENING AND BRIEF 2183 01:20:10,160 --> 01:20:11,040 INTERVENTION, AND ADAPTED 2184 01:20:11,040 --> 01:20:12,360 METHODS IN RESPONSE TO 2185 01:20:12,360 --> 01:20:13,960 CHALLENGES PRESENTED BY COVID-19 2186 01:20:13,960 --> 01:20:18,800 PANDEMIC. 2187 01:20:18,800 --> 01:20:20,680 CDC ALSO HAS A PROJECT CALLED 2188 01:20:20,680 --> 01:20:25,480 REAREDI SBI LOOKING AT ENHANCING 2189 01:20:25,480 --> 01:20:26,840 SCREENING AND BRIEF INTERVENTION 2190 01:20:26,840 --> 01:20:29,080 TO REDUCE DISPARITIES IN 2191 01:20:29,080 --> 01:20:30,280 PRENATAL ALCOHOL AND OTHER 2192 01:20:30,280 --> 01:20:31,080 SUBSTANCE EXPOSURE. 2193 01:20:31,080 --> 01:20:34,120 THE OBJECTIVE IS TO CONDUCT 2194 01:20:34,120 --> 01:20:35,320 FORMATIVE RESEARCH TO IDENTIFY 2195 01:20:35,320 --> 01:20:37,000 DISPARITIES AND ACCESS TO SBI 2196 01:20:37,000 --> 01:20:38,600 FOR PRENATAL AND POSTPARTUM 2197 01:20:38,600 --> 01:20:39,960 ALCOHOL AND OTHER SUBSTANCE USE 2198 01:20:39,960 --> 01:20:40,920 AND DEVELOP APPROPRIATE 2199 01:20:40,920 --> 01:20:41,920 COMMUNICATIONS MATERIALS FOR 2200 01:20:41,920 --> 01:20:45,240 FUTURE SBI PLANNING EFFORTS. 2201 01:20:45,240 --> 01:20:48,400 THIS PROJECT IS CONTRACTED BY 2202 01:20:48,400 --> 01:20:50,160 ACT ASSOCIATES AND IT STARTED IN 2203 01:20:50,160 --> 01:20:52,240 SEPTEMBER 2022 AND WILL END IN 2204 01:20:52,240 --> 01:20:53,640 SEPTEMBER 2024. 2205 01:20:53,640 --> 01:20:55,400 WE'RE CONSULTING WITH FASD 2206 01:20:55,400 --> 01:20:58,440 UNITED TO WORK WITH THREE TO 2207 01:20:58,440 --> 01:20:59,440 SEVEN NATIONAL GRASSROOTS 2208 01:20:59,440 --> 01:21:00,440 ORGANIZATIONS AND HEALTHCARE 2209 01:21:00,440 --> 01:21:02,960 PROVIDER ORGANIZATIONS TO 2210 01:21:02,960 --> 01:21:06,120 CONDUCT PROVIDER SURVEYS VIA 2211 01:21:06,120 --> 01:21:07,280 MEDSCAPE, INDIVIDUAL INTERVIEWS 2212 01:21:07,280 --> 01:21:08,880 WITH PROVIDERS, GRASS ROOT 2213 01:21:08,880 --> 01:21:10,280 ORGANIZATIONS, AND PEOPLE WITH 2214 01:21:10,280 --> 01:21:11,800 LIVED EXPERIENCE OF SUBSTANCE 2215 01:21:11,800 --> 01:21:13,560 USE DURING PREGNANCY, AND TO 2216 01:21:13,560 --> 01:21:15,640 CONDUCT FORMATIVE RESEARCH TO 2217 01:21:15,640 --> 01:21:17,080 GUIDE COMMUNICATION MATERIALS 2218 01:21:17,080 --> 01:21:20,560 AND FUTURE WORK IN SCREENING AND 2219 01:21:20,560 --> 01:21:25,920 BRIEF INTERVENTION. 2220 01:21:25,920 --> 01:21:28,000 WE'VE ALSO RECENTLY FUNDED A NEW 2221 01:21:28,000 --> 01:21:28,880 COOPERATIVE AGREEMENT WITH 2222 01:21:28,880 --> 01:21:30,080 NATIONAL PARTNERS TO ADDRESS 2223 01:21:30,080 --> 01:21:32,040 PRENATAL ALCOHOL AND OTHER 2224 01:21:32,040 --> 01:21:34,560 SUBSTANCE USE AND FETAL ALCOHOL 2225 01:21:34,560 --> 01:21:35,240 SPECTRUM DISORDERS. 2226 01:21:35,240 --> 01:21:36,480 THE COOPERATIVE AGREEMENT HAS 2227 01:21:36,480 --> 01:21:37,440 THREE COMPONENTS AND THE 2228 01:21:37,440 --> 01:21:39,080 PARTNERS UNDER EACH COMPONENT IS 2229 01:21:39,080 --> 01:21:41,120 LILISTED ON THE SLIDE. 2230 01:21:41,120 --> 01:21:43,000 THE PURPOSE IS TO BUILD A 2231 01:21:43,000 --> 01:21:44,080 COLLABORATIVE FRAME WORM OF 2232 01:21:44,080 --> 01:21:45,840 NATIONAL PARTNER ORGANIZATIONS 2233 01:21:45,840 --> 01:21:46,520 THAT CONTRIBUTIONS THAT 2234 01:21:46,520 --> 01:21:48,000 CONTRIBUTE TO REDUCING PRENATAL 2235 01:21:48,000 --> 01:21:49,840 ALCOHOL AND OTHER SUBSTANCE USE, 2236 01:21:49,840 --> 01:21:51,280 IMPROVE SUPPORT SERVICES AND 2237 01:21:51,280 --> 01:21:53,920 ACCESS TO CARE, AND IMPROVE 2238 01:21:53,920 --> 01:21:55,080 IDENTIFICATION AND HEALTH OF 2239 01:21:55,080 --> 01:22:02,880 CHILDREN AND FAMILIES LIVING 2240 01:22:02,880 --> 01:22:07,480 WITH FETAL ALCOHOL SYNDROME 2241 01:22:07,480 --> 01:22:09,720 DISORDERS. 2242 01:22:09,720 --> 01:22:11,960 WE HAVE A TWO-YEAR CONTRACT WITH 2243 01:22:11,960 --> 01:22:14,360 THE OAK RIDGE ASSOCIATED 2244 01:22:14,360 --> 01:22:16,080 UNIVERSITIES TO FORMALLY TEST 2245 01:22:16,080 --> 01:22:17,920 PREVIOUSLY DEVELOPED CONCEPTS, 2246 01:22:17,920 --> 01:22:19,920 DEVELOP FINAL PRODUCTS, AND 2247 01:22:19,920 --> 01:22:22,680 DEVELOP AND TEST MESSAGES FOR A 2248 01:22:22,680 --> 01:22:25,520 CDC GUIDE FOR FASD-RELATED 2249 01:22:25,520 --> 01:22:29,360 MESSAGING. 2250 01:22:29,360 --> 01:22:33,720 WE HAVE ADDITIONAL ONLOON ONLINE 2251 01:22:33,720 --> 01:22:34,960 COURSES, SUPPLEMENTAL LEARNING 2252 01:22:34,960 --> 01:22:36,360 AND OTHER RESOURCES ON OUR 2253 01:22:36,360 --> 01:22:40,640 WEBSITE AT 2254 01:22:40,640 --> 01:22:42,680 WWW.CDC.GOV/FASDTRAINING. 2255 01:22:42,680 --> 01:22:44,160 CDC HAS ALSO BEEN EXPLORING 2256 01:22:44,160 --> 01:22:45,320 OPPORTUNITIES TO CONDUCT 2257 01:22:45,320 --> 01:22:48,480 SURVEILLANCE OF CHILDREN WITH 2258 01:22:48,480 --> 01:22:49,360 FETAL ALCOHOL SPECTRUM 2259 01:22:49,360 --> 01:22:50,640 DISORDERS. 2260 01:22:50,640 --> 01:22:52,440 OUR ACTIVITIES EXPLORE DIFFERENT 2261 01:22:52,440 --> 01:22:53,840 APPROACHES TO UNDERSTAND THE 2262 01:22:53,840 --> 01:22:54,840 POPULATION OF CHILDREN WITH 2263 01:22:54,840 --> 01:22:56,320 FASDs. 2264 01:22:56,320 --> 01:22:59,400 WHICH INCLUDE CAREGIVER REPORTED 2265 01:22:59,400 --> 01:23:00,960 ESTIMATES, HEALTHCARE CLAIMS 2266 01:23:00,960 --> 01:23:02,720 DATABASES, AND CLINICAL 2267 01:23:02,720 --> 01:23:06,400 HEALTHCARE DATA. 2268 01:23:06,400 --> 01:23:07,520 THE NATIONAL SURVEY OF 2269 01:23:07,520 --> 01:23:11,240 CHILDREN'S HEALTH OR NSCH IS AN 2270 01:23:11,240 --> 01:23:12,840 ANNUAL CROSS-SECTIONAL SURVEY OF 2271 01:23:12,840 --> 01:23:13,760 CHILDREN'S HEALTH IN THE U.S. 2272 01:23:13,760 --> 01:23:14,720 DESIGNED TO PROVIDE BOTH 2273 01:23:14,720 --> 01:23:16,160 NATIONAL AND STATE LEVEL 2274 01:23:16,160 --> 01:23:17,360 ESTIMATES OF CHILDREN ZERO 2275 01:23:17,360 --> 01:23:19,000 THROUGH 17 YEARS OLD IN THE U.S. 2276 01:23:19,000 --> 01:23:20,760 IN COLLABORATION WITH HRSA. 2277 01:23:20,760 --> 01:23:23,080 WE RECENTLY ADDED THREE NEW 2278 01:23:23,080 --> 01:23:27,960 QUESTIONS ON FASD TO THE 2022 2279 01:23:27,960 --> 01:23:28,640 QUESTIONNAIRE. 2280 01:23:28,640 --> 01:23:30,040 THESE QUESTIONS ASK ABOUT PARENT 2281 01:23:30,040 --> 01:23:32,120 OR CAREGIVER REPORTED 2282 01:23:32,120 --> 01:23:34,200 RECOMMENDATION FOR FASD 2283 01:23:34,200 --> 01:23:36,720 EVALUATION, RECEIPT OF AN FASD 2284 01:23:36,720 --> 01:23:38,600 EVALUATION, AND DIAGNOSIS OF AN 2285 01:23:38,600 --> 01:23:40,560 FASD BY A HEALTHCARE PROVIDER. 2286 01:23:40,560 --> 01:23:42,840 DATA COLLECTION BEGAN IN SUMMER 2287 01:23:42,840 --> 01:23:44,600 OF 2022, AND DATA WILL BE 2288 01:23:44,600 --> 01:23:46,000 AVAILABLE TO SPONSORS IN THE 2289 01:23:46,000 --> 01:23:48,640 SUMMER OF 2023, AND MADE 2290 01:23:48,640 --> 01:23:55,400 PUBLICLY AVAILABLE IN FALL 2023. 2291 01:23:55,400 --> 01:23:57,800 CDC ALSO FUNDED A NEW 2292 01:23:57,800 --> 01:23:58,800 COOPERATIVE AGREEMENT THIS PAST 2293 01:23:58,800 --> 01:24:00,120 YEAR TO INFORM FUTURE 2294 01:24:00,120 --> 01:24:01,320 SURVEILLANCE ACTIVITIES RELATED 2295 01:24:01,320 --> 01:24:03,320 TO DOCUMENTATION OF FASD 2296 01:24:03,320 --> 01:24:05,480 DIAGNOSIS RELATED INFORMATION, 2297 01:24:05,480 --> 01:24:06,560 INCLUDING INFORMATION ABOUT 2298 01:24:06,560 --> 01:24:09,560 PRENATAL ALCOHOL EXPOSURE IN THE 2299 01:24:09,560 --> 01:24:10,760 HEALTH RECORD AND TO DESCRIBE 2300 01:24:10,760 --> 01:24:13,720 THE PATHWAYS AND PROCESSES FOR 2301 01:24:13,720 --> 01:24:14,720 FASD DIAGNOSIS. 2302 01:24:14,720 --> 01:24:16,120 INCLUDING THE SEQUENCE OF 2303 01:24:16,120 --> 01:24:17,320 HEALTHCARE ENCOUNTERS THAT 2304 01:24:17,320 --> 01:24:19,840 CHILDREN EXPERIENCE BEFORE 2305 01:24:19,840 --> 01:24:21,920 RECEIVING AN FASD DIAGNOSIS. 2306 01:24:21,920 --> 01:24:24,200 FUNDED RECIPIENTS ARE EMORY 2307 01:24:24,200 --> 01:24:26,640 UNIVERSITY, PARTNERING WITH 2308 01:24:26,640 --> 01:24:30,560 GEORGIA STATE UNIVERSITY AND 2309 01:24:30,560 --> 01:24:31,480 MATHEMATICA AND MINNESOTA 2310 01:24:31,480 --> 01:24:32,200 DEPARTMENT OF HEALTH PARTNERING 2311 01:24:32,200 --> 01:24:34,160 WITH PROOF ALLIANCE. 2312 01:24:34,160 --> 01:24:44,000 THANK YOU. 2313 01:24:44,000 --> 01:24:48,760 >> THANK YOU TO THE INTERAGENCY 2314 01:24:48,760 --> 01:24:49,400 COORDINATING COMMITTEE ON FETAL 2315 01:24:49,400 --> 01:24:49,920 ALCOHOL SPECTRUM DISORDERS 2316 01:24:49,920 --> 01:24:50,880 LEADERSHIP AND MEMBERSHIP FOR 2317 01:24:50,880 --> 01:24:52,080 THE OPPORTUNITY TO PRESENT 2318 01:24:52,080 --> 01:24:53,520 UPDATE ON BEHALF OF THE INDIAN 2319 01:24:53,520 --> 01:24:54,200 HEALTH SERVICE. 2320 01:24:54,200 --> 01:24:56,240 MY NAME IS TINA PETTARA-LAU, AND 2321 01:24:56,240 --> 01:24:58,320 I'M A MATERNAL CHILD HEALTH 2322 01:24:58,320 --> 01:24:59,880 CONSULTANT FOR THE IHS. 2323 01:24:59,880 --> 01:25:04,040 ALSO AN OB-GYN PROVIDING CARE IN 2324 01:25:04,040 --> 01:25:05,680 THE PHOENIX AREA IN BOTH URBAN 2325 01:25:05,680 --> 01:25:07,320 AND RURAL SETTINGS. 2326 01:25:07,320 --> 01:25:08,720 I APOLOGIZE I COULD NOT ATTEND 2327 01:25:08,720 --> 01:25:10,160 THIS MEETING AND I WILL BE ON A 2328 01:25:10,160 --> 01:25:11,120 PREVIOUSLY SCHEDULED SITE VISIT 2329 01:25:11,120 --> 01:25:14,760 TO THE NAVAJO AREA WITH THE 2330 01:25:14,760 --> 01:25:15,160 AMERICAN COLLEGE OF 2331 01:25:15,160 --> 01:25:16,560 OBSTETRICIANS AND GYNECOLOGISTS. 2332 01:25:16,560 --> 01:25:18,400 IHS IS THE FEDERAL AGENT IS THAT 2333 01:25:18,400 --> 01:25:19,200 PROVIDES DIRECT HEALTHCARE 2334 01:25:19,200 --> 01:25:21,560 SERVICES TO MEMBERS OF 574 2335 01:25:21,560 --> 01:25:24,280 FEDERALLY RECOGNIZED TRIBES 2336 01:25:24,280 --> 01:25:27,160 ACROSS 37 STATES SERVING 2337 01:25:27,160 --> 01:25:27,960 APPROXIMATELY 2.7 MILLION 2338 01:25:27,960 --> 01:25:32,240 AMERICAN IND INDIAN AND ALASKA 2339 01:25:32,240 --> 01:25:34,280 NATIVES. 2340 01:25:34,280 --> 01:25:37,240 IHS TRIBAL FACILITIES PROVIDE 2341 01:25:37,240 --> 01:25:38,880 SERVICES PRIMARILY UTILIZING A 2342 01:25:38,880 --> 01:25:39,960 COLLABORATIVE CARE MODEL WITH 2343 01:25:39,960 --> 01:25:42,360 PHYSICIANS AND CERTIFIED NURSE 2344 01:25:42,360 --> 01:25:43,920 MIDWIVES, SHARING IN THE CARE IN 2345 01:25:43,920 --> 01:25:46,160 THE MAJORITY OF PATIENTS WHO 2346 01:25:46,160 --> 01:25:47,440 BENEFIT FROM THE SKILLS OF EACH 2347 01:25:47,440 --> 01:25:48,160 DISLIN. 2348 01:25:48,160 --> 01:25:50,320 OTHER SITES UTILIZE A HOLISTIC 2349 01:25:50,320 --> 01:25:51,480 FAMILY MEDICINE MODEL TO 2350 01:25:51,480 --> 01:25:53,240 PRESERVE BIRTH IN VERY RURAL 2351 01:25:53,240 --> 01:25:53,600 SETTINGS. 2352 01:25:53,600 --> 01:25:55,640 IN BOTH MODELS NURSING IS 2353 01:25:55,640 --> 01:25:57,320 RECOGNIZED AND SUPPORTED AS A 2354 01:25:57,320 --> 01:26:00,200 CENTRAL PARTNER IN MATERNITY 2355 01:26:00,200 --> 01:26:02,400 CARE TEAM. 2356 01:26:02,400 --> 01:26:03,840 -- CONTINUES TO HIGHLIGHT 2357 01:26:03,840 --> 01:26:05,120 HEALTH INEQUITIES THAT MUST BE 2358 01:26:05,120 --> 01:26:06,000 URGENTLY ADDRESSED. 2359 01:26:06,000 --> 01:26:08,040 WE KNOW FROM THE REPORT BY THE 2360 01:26:08,040 --> 01:26:09,280 CENTERS FOR DISEASE CONTROL AND 2361 01:26:09,280 --> 01:26:12,720 PREVENTION IN 2022 THAT 80% OF 2362 01:26:12,720 --> 01:26:13,920 PREGNANCY RELATED DEATHS ARE 2363 01:26:13,920 --> 01:26:14,560 PREVENTABLE. 2364 01:26:14,560 --> 01:26:16,440 MENTAL HEALTH CONDITIONS DUE TO 2365 01:26:16,440 --> 01:26:18,520 SUICIDE OR SUBSTANCE USE AND 2366 01:26:18,520 --> 01:26:19,600 HEMORRHAGE WERE THE LEADING 2367 01:26:19,600 --> 01:26:20,040 CAUSES. 2368 01:26:20,040 --> 01:26:23,560 MORE THAN 50% OCCURRED 2369 01:26:23,560 --> 01:26:24,160 POSTPARTUM. 2370 01:26:24,160 --> 01:26:25,320 A SPECIFIC REVIEW OF AMERICAN 2371 01:26:25,320 --> 01:26:27,600 INDIAN AND ALASKA NATIVE DATA 2372 01:26:27,600 --> 01:26:29,080 FOUND IDENTICAL CAUSES OF DEATH. 2373 01:26:29,080 --> 01:26:30,800 IN 2022, THE MARCH OF DIMES 2374 01:26:30,800 --> 01:26:32,880 REPORTED THAT 24.2% OF NATIVE 2375 01:26:32,880 --> 01:26:35,400 WOMEN DO NOT RECEIVE ADEQUATE 2376 01:26:35,400 --> 01:26:39,040 PRENATAL CARE, 26.7% -- BABIES 2377 01:26:39,040 --> 01:26:41,200 WERE BORN IN AREAS OF LIMITED OR 2378 01:26:41,200 --> 01:26:43,080 NO ACCESS TO MATERNITY CARE, 2379 01:26:43,080 --> 01:26:45,120 KNOWN AS MATERNITY CARE DESERTS. 2380 01:26:45,120 --> 01:26:47,120 RECENT STUDY IN OBSTETRICS AND 2381 01:26:47,120 --> 01:26:50,280 GYNECOLOGY SHOW THAT FROM 2020 2382 01:26:50,280 --> 01:26:52,480 TO 2021, MORTALITY RATES DOUBLED 2383 01:26:52,480 --> 01:26:54,160 AMONG NATIVE AMERICAN AND ALASKA 2384 01:26:54,160 --> 01:26:55,360 NATIVE WOMEN WHO WERE PREGNANT 2385 01:26:55,360 --> 01:26:56,560 OR HAD GIVEN BIRTH WITHIN THE 2386 01:26:56,560 --> 01:26:57,560 PREVIOUS YEAR. 2387 01:26:57,560 --> 01:26:59,600 WE KNOW THAT BIRTHS BY NATIVE 2388 01:26:59,600 --> 01:27:01,160 PEOPLE OCCUR IN ALL 50 STATES 2389 01:27:01,160 --> 01:27:02,680 AND THE DISTRICT OF COLUMBIA. 2390 01:27:02,680 --> 01:27:05,000 26% OF THE NATIVE POPULATION 2391 01:27:05,000 --> 01:27:07,440 BIRTHS OCCUR -- PLANNED BIRTHS 2392 01:27:07,440 --> 01:27:10,600 OCCUR AT IHS OR TRIBAL 2393 01:27:10,600 --> 01:27:12,320 FACILITIES, 1% OF PLANNED BIRTHS 2394 01:27:12,320 --> 01:27:14,280 AT NINE FEDERAL FACILITIES AND 2395 01:27:14,280 --> 01:27:15,840 17.9% AT 11 TRIBAL FACILITIES. 2396 01:27:15,840 --> 01:27:17,680 AS MANY BIRTHS SITES ARE 2397 01:27:17,680 --> 01:27:19,320 MATERNITY CARE DESERTS IT IS 2398 01:27:19,320 --> 01:27:21,120 CHALLENGING TO OBTAIN SERVICES 2399 01:27:21,120 --> 01:27:22,440 FOR MENTAL HEALTH CONDITIONS OR 2400 01:27:22,440 --> 01:27:24,280 SUBSTANCE USE DISORDERS. 2401 01:27:24,280 --> 01:27:25,960 HISTORICAL TRAUMA AND SOCIAL 2402 01:27:25,960 --> 01:27:27,280 DETERMINANTS OF HEALTH SUCH AS 2403 01:27:27,280 --> 01:27:28,360 TRANSPORTATION FOR APPOINTMENTS, 2404 01:27:28,360 --> 01:27:29,880 SAFE HOUSING, ACCESS TO 2405 01:27:29,880 --> 01:27:30,800 ELECTRICITY OR CLEAN RUNNING 2406 01:27:30,800 --> 01:27:32,880 WATER CONTINUE TO 2407 01:27:32,880 --> 01:27:33,760 DISPROPORTIONATELY WIDEN GAPS 2408 01:27:33,760 --> 01:27:34,960 AND DISPARITIES IN MATERNAL 2409 01:27:34,960 --> 01:27:36,040 HEALTH OUTCOMES. 2410 01:27:36,040 --> 01:27:37,800 TO CLOSE THESE GAPS, THE IHS IS 2411 01:27:37,800 --> 01:27:39,880 USING AN INNOVATIVE 2412 01:27:39,880 --> 01:27:41,560 MULTIDISCIPLINARY APPROACH. 2413 01:27:41,560 --> 01:27:42,760 MATERNAL SUBSTANCE USE DISORDER 2414 01:27:42,760 --> 01:27:44,400 HAS SERIOUS NEGATIVE 2415 01:27:44,400 --> 01:27:46,480 CONSEQUENCES FOR BOTH PREGNANT 2416 01:27:46,480 --> 01:27:47,600 AND POSTPARTUM INDIVIDUALS AND 2417 01:27:47,600 --> 01:27:48,680 THEIR CHILDREN. 2418 01:27:48,680 --> 01:27:50,280 IHS IS WORKING TO STRENGTHEN 2419 01:27:50,280 --> 01:27:53,920 SUPPORTS AND GAIN ACCESS TO 2420 01:27:53,920 --> 01:27:54,800 PRENATAL ADDICTION SERVICES FOR 2421 01:27:54,800 --> 01:27:56,000 INDIVIDUALS WITH SUBSTANCE USE 2422 01:27:56,000 --> 01:27:57,680 DISORDER BY EXPANDING ACCESS TO 2423 01:27:57,680 --> 01:27:58,960 MEDICATIONS FOR OPIOID USE 2424 01:27:58,960 --> 01:28:00,640 DISORDER FOR PREGNANT PEOPLE AND 2425 01:28:00,640 --> 01:28:02,720 WOMEN OF REPRODUCTIVE AGE AMONG 2426 01:28:02,720 --> 01:28:04,120 TRIBAL NATIONS AND TRIBAL 2427 01:28:04,120 --> 01:28:04,760 COMMUNITIES, PARTICULARLY IN 2428 01:28:04,760 --> 01:28:06,120 URBAN AREAS. 2429 01:28:06,120 --> 01:28:07,320 ALTHOUGH INCREASE -- AND ALSO 2430 01:28:07,320 --> 01:28:09,520 USING INCREASED AWARENESS AND 2431 01:28:09,520 --> 01:28:09,920 UTILIZATION OF THE 2432 01:28:09,920 --> 01:28:10,720 RECOMMENDATIONS TO THE INDIANS 2433 01:28:10,720 --> 01:28:12,040 HEALTH SERVICE ON AMERICAN 2434 01:28:12,040 --> 01:28:13,440 INDIAN AND ALASKA NATIVE 2435 01:28:13,440 --> 01:28:14,520 PREGNANT WOMEN AND WOMEN OF 2436 01:28:14,520 --> 01:28:17,320 CHILD BEARING AGE WITH OPIOID 2437 01:28:17,320 --> 01:28:17,720 INDUCED DISORDER. 2438 01:28:17,720 --> 01:28:19,760 IN JUNE 2022, THE NORTHWEST 2439 01:28:19,760 --> 01:28:21,080 PORTLAND AREA INDIAN HEALTH 2440 01:28:21,080 --> 01:28:23,320 BOARD ALONGSIDE INDIAN CARE 2441 01:28:23,320 --> 01:28:25,320 PROVIDER SUBJECT MATTER EXPERTS 2442 01:28:25,320 --> 01:28:26,200 AND INDIVIDUALS WITH LIVED 2443 01:28:26,200 --> 01:28:27,320 EXPERIENCE WORKED TOGETHER TO 2444 01:28:27,320 --> 01:28:28,920 CREATE THE PLANS OF SAFE CARE. 2445 01:28:28,920 --> 01:28:30,920 A PROVIDER GUIDE AND PATIENT 2446 01:28:30,920 --> 01:28:32,840 FACT SHEETS FOR PREGNANT AND 2447 01:28:32,840 --> 01:28:34,160 PARENTING PERSONS EXPERIENCING 2448 01:28:34,160 --> 01:28:35,560 SUBSTANCE USE DISORDERS. 2449 01:28:35,560 --> 01:28:37,240 THIS GUIDE OFFERS HEALTHCARE 2450 01:28:37,240 --> 01:28:38,000 PROVIDERS EVIDENCE-BASED 2451 01:28:38,000 --> 01:28:38,800 RECOMMENDATIONS FOR POTENTIAL 2452 01:28:38,800 --> 01:28:40,560 POINTS OF INTERVENTION AS WELL 2453 01:28:40,560 --> 01:28:42,200 AS CUSTOMIZABLE PATIENT 2454 01:28:42,200 --> 01:28:43,400 EDUCATION AND RESOURCES FOR 2455 01:28:43,400 --> 01:28:44,600 LOCAL USE. 2456 01:28:44,600 --> 01:28:48,560 MCH IS ALSO WORKING WITH IHS 2457 01:28:48,560 --> 01:28:50,720 NATIONAL COMMITTEE ON HEROIN, 2458 01:28:50,720 --> 01:28:52,440 OPIOID AND PAIN EFFORTS ALSO 2459 01:28:52,440 --> 01:28:53,520 KNOWN AS HOPE TO PROVIDE 2460 01:28:53,520 --> 01:28:54,800 EDUCATION TO THE FIELD THROUGH 2461 01:28:54,800 --> 01:28:56,240 WEBINARS ON SUBSTANCE USE 2462 01:28:56,240 --> 01:28:57,880 DISORDER. 2463 01:28:57,880 --> 01:29:00,520 ADDITIONALLY, IHS WILL PILOT A 2464 01:29:00,520 --> 01:29:01,720 MATERNITY CARE COORDINATOR 2465 01:29:01,720 --> 01:29:02,920 PROGRAM TO PROVIDE TELEHEALTH 2466 01:29:02,920 --> 01:29:04,280 AND HOME VISIT SUPPORT TO THE 2467 01:29:04,280 --> 01:29:05,920 PARENT AND CHILD DYAD FROM 2468 01:29:05,920 --> 01:29:08,120 PRECON SEMTION COUNSELING AND 2469 01:29:08,120 --> 01:29:10,080 PREGNANCY NAVIGATION TO 2470 01:29:10,080 --> 01:29:11,800 POSTPARTUM CONTINUITY OF CARE. 2471 01:29:11,800 --> 01:29:13,240 THIS INCREASES ACCESS TO PATIENT 2472 01:29:13,240 --> 01:29:15,360 CARE INCLUDING SCREENING, 2473 01:29:15,360 --> 01:29:16,000 EDUCATION, INTERVENTION AND 2474 01:29:16,000 --> 01:29:17,080 TREATMENT AND PROVIDES 2475 01:29:17,080 --> 01:29:18,640 ADDITIONAL SUPPORT TO SITES AND 2476 01:29:18,640 --> 01:29:19,800 HELPS GATHER FEEDBACK ABOUT 2477 01:29:19,800 --> 01:29:20,520 PATIENT EXPERIENCES AND 2478 01:29:20,520 --> 01:29:21,480 RESOURCES THAT ARE NEEDED IN THE 2479 01:29:21,480 --> 01:29:22,600 FIELD. 2480 01:29:22,600 --> 01:29:25,120 WE LOOK FORWARD TO CONTINUED 2481 01:29:25,120 --> 01:29:26,880 PARTNERSHIP THROUGH ICCFASD AND 2482 01:29:26,880 --> 01:29:28,400 CONVERSATION WITH OUR TRIBES AND 2483 01:29:28,400 --> 01:29:29,480 COMMUNITIES TO WORK TOGETHER TO 2484 01:29:29,480 --> 01:29:32,520 CLOSE GAPS IN MATERNITY CARE. 2485 01:29:32,520 --> 01:29:33,680 THANK YOU FOR THE OPPORTUNITY TO 2486 01:29:33,680 --> 01:29:41,880 PROVIDE UPDATES TODAY. 2487 01:29:41,880 --> 01:29:43,160 >> GOOD AFTERNOON. 2488 01:29:43,160 --> 01:29:45,080 WELCOME TO THE ICCFASD PUBLIC 2489 01:29:45,080 --> 01:29:47,480 MEETING FOR 2023. 2490 01:29:47,480 --> 01:29:51,000 I'M JON DUNBAR COOPER FROM 2491 01:29:51,000 --> 01:29:51,960 SAMHSA. 2492 01:29:51,960 --> 01:29:54,720 AT SAMHSA, WE HAVE EARLY 2493 01:29:54,720 --> 01:29:56,040 CHILDHOOD MENTAL HEALTH 2494 01:29:56,040 --> 01:29:56,480 PROGRAMS. 2495 01:29:56,480 --> 01:29:58,120 AS PART OF ITS MISSION TO REDUCE 2496 01:29:58,120 --> 01:30:01,200 THE IMPACT OF SUBSTANCE USE AND 2497 01:30:01,200 --> 01:30:02,400 MENTAL ILLNESS ON OUR 2498 01:30:02,400 --> 01:30:03,600 COMMUNITIES, SAMHSA FUNDS 2499 01:30:03,600 --> 01:30:05,120 PROGRAMS THAT PROMOTE AND 2500 01:30:05,120 --> 01:30:06,400 SUPPORT THE HEALTH AND WELLNESS 2501 01:30:06,400 --> 01:30:12,600 OF YOUNG CHILDREN. 2502 01:30:12,600 --> 01:30:14,160 ADDITIONALLY, THROUGH EARLY 2503 01:30:14,160 --> 01:30:15,760 CHILDHOOD GRANT FUNDING, SAMHSA 2504 01:30:15,760 --> 01:30:17,680 STRIVES TOWARDS A FUTURE WE ARE 2505 01:30:17,680 --> 01:30:19,080 ALL YOUNG CHILDREN HAVE THE 2506 01:30:19,080 --> 01:30:21,480 OPPORTUNITY TO THRIVE IN ALL 2507 01:30:21,480 --> 01:30:23,880 DOMAINS OF DEVELOPMENT, 2508 01:30:23,880 --> 01:30:25,560 PHYSICAL, COGNITIVE, SPIRITUAL, 2509 01:30:25,560 --> 01:30:28,280 EMOTIONAL, AND SOCIAL. 2510 01:30:28,280 --> 01:30:29,360 CAREGIVERS HAVE ACCESS TO 2511 01:30:29,360 --> 01:30:30,480 SUPPORTS AND SERVICES TO MEET 2512 01:30:30,480 --> 01:30:32,120 THE NEEDS OF YOUNG CHILDREN IN 2513 01:30:32,120 --> 01:30:36,160 THEIR CARE. 2514 01:30:36,160 --> 01:30:38,360 IN THE CONTEXT OF STRONG 2515 01:30:38,360 --> 01:30:40,560 CAREGIVER RELATIONSHIPS AND 2516 01:30:40,560 --> 01:30:42,200 NURTURING ENVIRONMENTS, YOUNG 2517 01:30:42,200 --> 01:30:43,600 CHILDREN CAN THEN THRIVE 2518 01:30:43,600 --> 01:30:45,480 SOCIALLY AND EMOTIONALLY, 2519 01:30:45,480 --> 01:30:47,600 BUILDING THEIR OWN RESILIENCE TO 2520 01:30:47,600 --> 01:30:51,840 SUPPORT LIFELONG MENTAL HEALTH. 2521 01:30:51,840 --> 01:30:53,800 HEALTHY CHILDREN AND FAMILIES 2522 01:30:53,800 --> 01:30:55,960 BUILD A HEALTHIER FUTURE FOR ALL 2523 01:30:55,960 --> 01:31:01,200 OF US AND OUR COMMUNITIES. 2524 01:31:01,200 --> 01:31:03,080 WE ALSO HAVE EARLY CHILDHOOD 2525 01:31:03,080 --> 01:31:05,040 MENTAL HEALTH PROGRAMS FOR VERY 2526 01:31:05,040 --> 01:31:07,240 YOUNG CHILDREN, FROM BIRTH TO 2527 01:31:07,240 --> 01:31:09,280 8 YEARS OF AGE, PROJECT LAUNCH, 2528 01:31:09,280 --> 01:31:13,320 AND WE ALSO HAVE A NATIVE 2529 01:31:13,320 --> 01:31:14,920 AMERICAN INDIAN AND ALASKA 2530 01:31:14,920 --> 01:31:17,880 NATIVE PROJECT LAUNCH PROGRAM 2531 01:31:17,880 --> 01:31:19,600 FROM BIRTH TO 8 YEARS OF AGE 2532 01:31:19,600 --> 01:31:21,800 WITHIN TRIBES, TERRITORIES, AND 2533 01:31:21,800 --> 01:31:25,000 PACIFIC ISLAND JURISDICTIONS, BY 2534 01:31:25,000 --> 01:31:26,640 ADDRESSING THE SOCIAL, 2535 01:31:26,640 --> 01:31:28,200 EMOTIONAL, COGNITIVE, PHYSICAL 2536 01:31:28,200 --> 01:31:29,760 AND BEHAVIORAL ASPECTS OF THEIR 2537 01:31:29,760 --> 01:31:30,720 DEVELOPMENT, PREPARING YOUNG 2538 01:31:30,720 --> 01:31:34,240 CHILDREN TO THRIVE IN SCHOOL AND 2539 01:31:34,240 --> 01:31:36,760 BEYOND. 2540 01:31:36,760 --> 01:31:38,960 THIS IS ANOTHER PROGRAM, INFANT 2541 01:31:38,960 --> 01:31:41,480 EARLY CHILDHOOD MENTAL HEALTH. 2542 01:31:41,480 --> 01:31:43,880 THIS PROGRAM IMPROVES OUTCOMES 2543 01:31:43,880 --> 01:31:45,120 FOR CHILDREN FROM BIRTH UP TO 12 2544 01:31:45,120 --> 01:31:48,040 YEARS OF AGE, BY DEVELOPING, 2545 01:31:48,040 --> 01:31:50,320 MAINTAINING OR ENHANCING INFANT 2546 01:31:50,320 --> 01:31:51,240 AND EARLY CHILDHOOD MENTAL 2547 01:31:51,240 --> 01:31:52,760 HEALTH PROMOTION, INTERVENTION, 2548 01:31:52,760 --> 01:31:54,360 AND TREATMENT SERVICES. 2549 01:31:54,360 --> 01:31:56,160 WE ALSO HAVE A CENTER OF 2550 01:31:56,160 --> 01:31:59,600 EXCELLENCE FOR INFANT AND EARLY 2551 01:31:59,600 --> 01:32:00,160 CHILDHOOD MENTAL HEALTH 2552 01:32:00,160 --> 01:32:07,240 CONSULTATION. 2553 01:32:07,240 --> 01:32:09,440 SAMHSA ALSO HAS A NATIONAL CHILD 2554 01:32:09,440 --> 01:32:12,240 TRAUMATIC STRESS INITIATIVE THAT 2555 01:32:12,240 --> 01:32:13,760 RAISES AWARENESS OF THE IMPACT 2556 01:32:13,760 --> 01:32:15,640 OF TRAUMA ON CHILDREN AND 2557 01:32:15,640 --> 01:32:16,600 ADOLESCENTS AS A BEHAVIORAL 2558 01:32:16,600 --> 01:32:18,280 HEALTH CONCERN REQUIRING A 2559 01:32:18,280 --> 01:32:21,440 HEALING AND RECOVERY PROCESS. 2560 01:32:21,440 --> 01:32:25,560 YOU CAN LEARN MORE ABOUT NCTSI 2561 01:32:25,560 --> 01:32:29,560 AT THE FOLLOWING LINKS. 2562 01:32:29,560 --> 01:32:31,600 RECOGNIZING AND TREATING CHILD 2563 01:32:31,600 --> 01:32:34,160 TRAUMATIC STRESS, SIGNS OF CHILD 2564 01:32:34,160 --> 01:32:35,400 TRAUMATIC STRESS, IMPACT ON 2565 01:32:35,400 --> 01:32:36,400 CHILDREN, TREATMENT OPTIONS AND 2566 01:32:36,400 --> 01:32:37,880 HOW FAMILIES AND CAREGIVERS CAN 2567 01:32:37,880 --> 01:32:39,560 HELP. 2568 01:32:39,560 --> 01:32:41,440 FIND RESEARCH AND SUPPORT FROM 2569 01:32:41,440 --> 01:32:43,960 OTHER ORGANIZATIONS ON TRAUMA. 2570 01:32:43,960 --> 01:32:53,920 IT IS ALSO AVAILABLE IN SPANISH. 2571 01:32:53,920 --> 01:32:57,120 SAMHSA HAS SCREENING AND BRIEF 2572 01:32:57,120 --> 01:32:58,320 INTERVENTION BOTH IN THE CENTER 2573 01:32:58,320 --> 01:33:00,160 FOR SUBSTANCE ABUSE PREVENTION 2574 01:33:00,160 --> 01:33:02,520 AND THE CENTER FOR SUBSTANCE 2575 01:33:02,520 --> 01:33:05,360 ABUSE TREATMENT. 2576 01:33:05,360 --> 01:33:08,960 SCREENING AND BRIEF INTERVENTION 2577 01:33:08,960 --> 01:33:12,440 IS A COMPREHENSIVE, INTEGRATED, 2578 01:33:12,440 --> 01:33:13,600 PUBLIC HEALTH APPROACH TO THE 2579 01:33:13,600 --> 01:33:14,680 DELIVERY OF EARLY INTERVENTION 2580 01:33:14,680 --> 01:33:15,640 AND TREATMENT SERVICES FOR 2581 01:33:15,640 --> 01:33:16,840 PERSONS WITH SUBSTANCE USE 2582 01:33:16,840 --> 01:33:17,560 DISORDERS AS WELL AS THOSE WHO 2583 01:33:17,560 --> 01:33:20,280 ARE AT RISK OF DEVELOPING THESE 2584 01:33:20,280 --> 01:33:20,960 DISORDERS. 2585 01:33:20,960 --> 01:33:22,480 PRIMARY CARE CENTERS, HOSPITAL 2586 01:33:22,480 --> 01:33:23,840 AND EMERGENCY ROOMS, TRAUMA 2587 01:33:23,840 --> 01:33:25,240 CENTERS AND OTHER COMMUNITY 2588 01:33:25,240 --> 01:33:26,120 SETTINGS PROVIDE OPPORTUNITIES 2589 01:33:26,120 --> 01:33:34,680 FOR EARLY INTERVENTION. 2590 01:33:34,680 --> 01:33:37,640 SAMHSA ALSO HAS SBIRT GRANTEES 2591 01:33:37,640 --> 01:33:39,480 SINCE 2003, IT HAS FUNDED 17 2592 01:33:39,480 --> 01:33:41,200 MEDICAL RESIDENCY COOPERATIVE 2593 01:33:41,200 --> 01:33:44,440 AGREEMENTS, 15 S 15 STATE COOPEE 2594 01:33:44,440 --> 01:33:45,880 AGREEMENTS, AND 12 TARGETED 2595 01:33:45,880 --> 01:33:47,880 CAPACITY EXPANSION CAMPUS 2596 01:33:47,880 --> 01:33:50,400 SCREENING AND BRIEF INTERVENTION 2597 01:33:50,400 --> 01:33:50,720 GRANTS. 2598 01:33:50,720 --> 01:33:52,680 THE FOLLOWING BULLETS CAN SHOW 2599 01:33:52,680 --> 01:33:56,280 YOU WHERE ON SAMHSA'S INTERNET 2600 01:33:56,280 --> 01:33:57,280 THAT YOU CAN FIND MORE 2601 01:33:57,280 --> 01:33:58,280 INFORMATION ABOUT EACH OF THESE 2602 01:33:58,280 --> 01:34:02,000 GRANTS. 2603 01:34:02,000 --> 01:34:03,240 ADDITIONAL RESOURCES ARE 2604 01:34:03,240 --> 01:34:05,120 AVAILABLE ONLINE OR BY CALLING 2605 01:34:05,120 --> 01:34:15,640 SAMHSA'S TOLL-FREE HELP LINE AT 2606 01:34:16,240 --> 01:34:17,240 800-662-HELP, OR GO TO THIS LINK 2607 01:34:17,240 --> 01:34:20,440 ON SAMHSA.GOV AND VIEW AVAILABLE 2608 01:34:20,440 --> 01:34:24,080 REIMBURSEMENT CODES AS WELL. 2609 01:34:24,080 --> 01:34:25,480 MEDICATIONS FOR SUBSTANCE USE 2610 01:34:25,480 --> 01:34:26,920 DISORDERS AT SAMHSA. 2611 01:34:26,920 --> 01:34:28,440 LEARN HOW MEDICATIONS CAN BE 2612 01:34:28,440 --> 01:34:31,640 USED TO TREAT SUBSTANCE USE 2613 01:34:31,640 --> 01:34:33,320 DISORDERS, AND SUSTAIN RECOVERY 2614 01:34:33,320 --> 01:34:39,400 AND PREVENT OVERDOSE. 2615 01:34:39,400 --> 01:34:41,160 THE USE OF MEDICATIONS IN 2616 01:34:41,160 --> 01:34:43,040 COMBINATION WITH COUNSELING AND 2617 01:34:43,040 --> 01:34:43,920 BEHAVIORAL THERAPIES TO PROVIDE 2618 01:34:43,920 --> 01:34:46,360 A WHOLE PATIENT APPROACH TO THE 2619 01:34:46,360 --> 01:34:47,600 TREATMENT OF SUBSTANCE USE 2620 01:34:47,600 --> 01:34:50,960 DISORDERS IS AN APPROACH AT THAT 2621 01:34:50,960 --> 01:34:52,600 SAMHSA PROMOTES. 2622 01:34:52,600 --> 01:34:54,480 MANY MEDICATIONS USED ARE 2623 01:34:54,480 --> 01:34:55,760 APPROVED BY THE FOOD AND DRUG 2624 01:34:55,760 --> 01:34:56,640 ADMINISTRATION AND ARE 2625 01:34:56,640 --> 01:34:57,760 CLINICALLY DRIVEN AND TAILORED 2626 01:34:57,760 --> 01:34:59,480 TO MEET EACH PATIENT'S NEEDS. 2627 01:34:59,480 --> 01:35:00,520 RESEARCH SHOWS THAT A 2628 01:35:00,520 --> 01:35:01,960 COMBINATION OF MEDICATION AND 2629 01:35:01,960 --> 01:35:03,920 THERAPY CAN SUCCESSFULLY TREAT 2630 01:35:03,920 --> 01:35:13,800 SUBSTANCE USE DISORDERS. 2631 01:35:13,800 --> 01:35:15,200 THE ULTIMATE GOAL IS FULL 2632 01:35:15,200 --> 01:35:15,720 RECOVERY. 2633 01:35:15,720 --> 01:35:17,160 THAT IS THE GOAL OF TREATMENT, 2634 01:35:17,160 --> 01:35:19,000 INCLUDING THE ABILITY TO LIVE A 2635 01:35:19,000 --> 01:35:19,520 SELF-DIRECTED LIFE. 2636 01:35:19,520 --> 01:35:21,040 THIS TREATMENT APPROACH HAS BEEN 2637 01:35:21,040 --> 01:35:23,720 SHOWN TO IMPROVE PATIENT 2638 01:35:23,720 --> 01:35:25,680 SURVIVAL, INCREASE RETENTION IN 2639 01:35:25,680 --> 01:35:27,240 TREATMENT, DECREASE ILLICIT 2640 01:35:27,240 --> 01:35:29,280 OPIATE USE AND OTHER CRIMINAL 2641 01:35:29,280 --> 01:35:30,640 ACTIVITY AMONG PEOPLE WITH 2642 01:35:30,640 --> 01:35:33,480 SUBSTANCE USE DISORDERS, 2643 01:35:33,480 --> 01:35:34,440 INCREASE PATIENTS' ABILITY TO 2644 01:35:34,440 --> 01:35:43,960 GAIN AND MAINTAIN EMPLOYMENT. 2645 01:35:43,960 --> 01:35:45,400 MEDICATIONS FOR SUBSTANCE USE 2646 01:35:45,400 --> 01:35:47,160 DISORDERS ALSO IMPROVE BIRTH 2647 01:35:47,160 --> 01:35:48,440 OUTCOMES AMONG WOMEN WHO HAVE 2648 01:35:48,440 --> 01:35:49,920 SUBSTANCE USE DISORDERS AND ARE 2649 01:35:49,920 --> 01:35:50,560 PREGNANT. 2650 01:35:50,560 --> 01:35:52,120 RESEARCH ALSO SHOWS THAT THESE 2651 01:35:52,120 --> 01:35:53,200 MEDICATIONS AND THERAPIES CAN 2652 01:35:53,200 --> 01:35:54,400 CONTRIBUTE TO LOWERING A 2653 01:35:54,400 --> 01:35:57,840 PERSON'S RISK OF CONTRACTING HIV 2654 01:35:57,840 --> 01:35:59,680 OR HEPATITIS C BY REDUCING THE 2655 01:35:59,680 --> 01:36:01,560 POTENTIAL FOR RELAPSE. 2656 01:36:01,560 --> 01:36:03,320 LEARN MORE ABOUT SUBSTANCE 2657 01:36:03,320 --> 01:36:04,960 MISUSE AND HOW IT RELATES TO 2658 01:36:04,960 --> 01:36:09,240 HIV, AIDS, AND VIRAL HEPATITIS, 2659 01:36:09,240 --> 01:36:10,800 AND ALSO LEARN MORE ABOUT 2660 01:36:10,800 --> 01:36:11,760 CO-OCCURRING DISORDERS AND OTHER 2661 01:36:11,760 --> 01:36:14,080 HEALTH CONDITIONS ON THE 2662 01:36:14,080 --> 01:36:22,360 SAMHSA.GOV WEBSITE. 2663 01:36:22,360 --> 01:36:24,080 THE FASD HAS ALSO APPROVED 2664 01:36:24,080 --> 01:36:25,200 SEVERAL DIFFERENT MEDICATIONS TO 2665 01:36:25,200 --> 01:36:27,400 TREAT ALCOHOL USE DISORDERS AND 2666 01:36:27,400 --> 01:36:29,240 OPIOID USE DISORDERS. 2667 01:36:29,240 --> 01:36:31,800 THESE MEDICATIONS RELIEVE 2668 01:36:31,800 --> 01:36:33,000 WITHDRAWAL SYMPTOMS AND 2669 01:36:33,000 --> 01:36:34,200 PSYCHOLOGICAL CRAVINGS THAT 2670 01:36:34,200 --> 01:36:35,920 CAUSE CHEMICAL IMBALANCES IN THE 2671 01:36:35,920 --> 01:36:37,400 BODY. 2672 01:36:37,400 --> 01:36:38,600 MEDICATIONS USED ARE 2673 01:36:38,600 --> 01:36:40,120 EVIDENCE-BASED TREATMENT OPTIONS 2674 01:36:40,120 --> 01:36:42,000 AND DO NOT JUST SUBSTITUTE ONE 2675 01:36:42,000 --> 01:36:49,680 DRUG FOR ANOTHER. 2676 01:36:49,680 --> 01:36:50,880 MEDICATIONS FOR ALCOHOL USE 2677 01:36:50,880 --> 01:36:55,800 DISORDER ALSO INCLUDES 2678 01:36:55,800 --> 01:36:58,560 ACAMPROSATE, DISULFIRAM AND 2679 01:36:58,560 --> 01:36:58,880 NALTREXONE. 2680 01:36:58,880 --> 01:37:00,640 THESE ARE THE MOST COMMON 2681 01:37:00,640 --> 01:37:02,320 MEDICATIONS USED TO TREAT 2682 01:37:02,320 --> 01:37:03,120 ALCOHOL USE DISORDER. 2683 01:37:03,120 --> 01:37:04,400 THEY DO NOT PROVIDE A CURE FOR 2684 01:37:04,400 --> 01:37:05,640 THE DISORDER BUT ARE MOST 2685 01:37:05,640 --> 01:37:06,760 EFFECTIVE FOR PEOPLE WHO 2686 01:37:06,760 --> 01:37:07,640 PARTICIPATE IN THE TREATMENT 2687 01:37:07,640 --> 01:37:09,200 PROGRAM. 2688 01:37:09,200 --> 01:37:10,480 ADDITIONAL RESOURCES INCLUDE THE 2689 01:37:10,480 --> 01:37:11,800 MEDICATION FOR TREATMENT OF 2690 01:37:11,800 --> 01:37:13,800 ALCOHOL USE DISORDER, A BRIEF 2691 01:37:13,800 --> 01:37:16,440 GUIDE, PUBLISHED IN 2015, AND 2692 01:37:16,440 --> 01:37:18,920 TIP 49, INCORPORATING ALCOHOL 2693 01:37:18,920 --> 01:37:19,960 PHARMACOTHERAPIES INTO MEDICAL 2694 01:37:19,960 --> 01:37:30,160 PRACTICE. 2695 01:37:34,600 --> 01:37:36,680 MEDICATIONS FOR OPIOID USE 2696 01:37:36,680 --> 01:37:38,560 DISORDER. 2697 01:37:38,560 --> 01:37:40,640 BUPRENORPHINE, METHADONE AND 2698 01:37:40,640 --> 01:37:42,000 NALTREXONE ARE THE MOST COMMON 2699 01:37:42,000 --> 01:37:43,720 MEDICATIONS USED TO TREAT OUD. 2700 01:37:43,720 --> 01:37:45,680 THESE MEDICATIONS OPERATE TO 2701 01:37:45,680 --> 01:37:47,680 NORMALIZE BRAIN CHEMISTRY, BLOCK 2702 01:37:47,680 --> 01:37:49,760 THE EUPHORIC EFFECTS OF ALCOHOL 2703 01:37:49,760 --> 01:37:52,160 AND OPIOIDS, RELIEVE 2704 01:37:52,160 --> 01:37:53,920 PHYSIOLOGICAL CRAVINGS, AND 2705 01:37:53,920 --> 01:37:55,160 NORMALIZE BODY FUNCTIONS WITHOUT 2706 01:37:55,160 --> 01:37:56,720 THE NEGATIVE AND EUPHORIC 2707 01:37:56,720 --> 01:38:02,840 EFFECTS OF THE SUBSTANCE USED. 2708 01:38:02,840 --> 01:38:05,040 NALOXONE IS USED TO PREVENT 2709 01:38:05,040 --> 01:38:07,600 OPIOID OVERDOSE BY REVERSING THE 2710 01:38:07,600 --> 01:38:09,760 TOXIC EFFECTS OF THE OVERDOSE. 2711 01:38:09,760 --> 01:38:11,880 ACCORDING TO THE WORLD HEALTH 2712 01:38:11,880 --> 01:38:13,000 ORGANIZATION, NALOXONE IS ONE OF 2713 01:38:13,000 --> 01:38:15,520 A NUMBER OF MEDICATIONS 2714 01:38:15,520 --> 01:38:17,200 CONSIDERED ESSENTIAL TO A 2715 01:38:17,200 --> 01:38:18,920 FUNCTIONING HEALTHCARE SYSTEM. 2716 01:38:18,920 --> 01:38:21,360 AND WE ALL HAVE TO REMEMBER, 2717 01:38:21,360 --> 01:38:22,760 MEDICATIONS AND CHILD SAFETY, 2718 01:38:22,760 --> 01:38:24,360 AND ADULT SAFETY INDEED SHOULD 2719 01:38:24,360 --> 01:38:25,560 BE KEPT AWAY FROM PEOPLE THAT 2720 01:38:25,560 --> 01:38:26,520 THE MEDICATION WAS NOT 2721 01:38:26,520 --> 01:38:31,120 PRESCRIBED FOR. 2722 01:38:31,120 --> 01:38:33,280 HARM REDUCTION AT SAMHSA. 2723 01:38:33,280 --> 01:38:34,600 HARM REDUCTION IS A PROACTIVE 2724 01:38:34,600 --> 01:38:36,560 AND EVIDENCE-BASED APPROACH TO 2725 01:38:36,560 --> 01:38:37,920 REDUCING NEGATIVE PERSONAL AND 2726 01:38:37,920 --> 01:38:39,280 PUBLIC HEALTH IMPACTS OF 2727 01:38:39,280 --> 01:38:41,120 BEHAVIOR ASSOCIATED WITH ALCOHOL 2728 01:38:41,120 --> 01:38:43,640 AND OTHER SUBSTANCE USE AT BOTH 2729 01:38:43,640 --> 01:38:45,000 THE INDIVIDUAL AND COMMUNITY 2730 01:38:45,000 --> 01:38:48,000 LEVELS. 2731 01:38:48,000 --> 01:38:49,000 PROVISIONAL DATA FROM CDC SHOW 2732 01:38:49,000 --> 01:38:50,640 THAT WE HAVE CROSSED THE TRAGIC 2733 01:38:50,640 --> 01:38:53,400 MILESTONE OF A PREDICTED 100,000 2734 01:38:53,400 --> 01:38:54,600 OVERDOSE DEATHS IN 12 MONTHS 2735 01:38:54,600 --> 01:39:03,920 FROM MAY 2020 TO APRIL 2021. 2736 01:39:03,920 --> 01:39:05,960 HARM REDUCTION'S PLACE IN AND 2737 01:39:05,960 --> 01:39:07,480 AMONG PREVENTION, TREATMENT AND 2738 01:39:07,480 --> 01:39:08,120 RECOVERY. 2739 01:39:08,120 --> 01:39:09,640 A COMPREHENSIVE PREVENTION 2740 01:39:09,640 --> 01:39:10,920 STRATEGY, HARM REDUCTION IS PART 2741 01:39:10,920 --> 01:39:13,400 OF THE CONTINUUM OF CARE. 2742 01:39:13,400 --> 01:39:15,280 HARM REDUCTION APPROACHES HAVE 2743 01:39:15,280 --> 01:39:16,600 BEEN PROVEN TO PREVENT DEATH, 2744 01:39:16,600 --> 01:39:18,200 INJURY, DISEASE, OVERDOSE AND 2745 01:39:18,200 --> 01:39:19,640 PREVENT SUBSTANCE MISUSE OR 2746 01:39:19,640 --> 01:39:20,680 DISORDER. 2747 01:39:20,680 --> 01:39:22,000 HARM REDUCTION IS AN EFFECTIVE 2748 01:39:22,000 --> 01:39:23,720 APPROACH TO ADDRESSING THE 2749 01:39:23,720 --> 01:39:26,000 PUBLIC HEALTH EPIDEMIC INVOLVING 2750 01:39:26,000 --> 01:39:31,120 SUBSTANCE MISUSE. 2751 01:39:31,120 --> 01:39:32,480 SAMHSA'S CURRENT AND FUTURE 2752 01:39:32,480 --> 01:39:33,920 SUPPORT FOR HARM REDUCTION. 2753 01:39:33,920 --> 01:39:36,120 SAMHSA HAS FUNDED 25 REDUCTION 2754 01:39:36,120 --> 01:39:37,160 GRANT PROGRAMS. 2755 01:39:37,160 --> 01:39:39,800 THIS FUNDING, AUTHORIZED BY THE 2756 01:39:39,800 --> 01:39:42,040 AMERICAN RESCUE PLAN, WILL HELP 2757 01:39:42,040 --> 01:39:43,680 TO INCREASE ACCESS TO A RANGE OF 2758 01:39:43,680 --> 01:39:45,200 COMMUNITY HARM REDUCTION 2759 01:39:45,200 --> 01:39:46,880 SERVICES AND SUPPORT HARM 2760 01:39:46,880 --> 01:39:48,840 REDUCTION SERVICE PROVIDERS AS 2761 01:39:48,840 --> 01:39:52,400 THEY WORK TO PREVENT OVERDOSE 2762 01:39:52,400 --> 01:39:57,920 DEATHS. 2763 01:39:57,920 --> 01:39:59,920 HERE ARE SOME RESOURCES FOR 2764 01:39:59,920 --> 01:40:00,920 SERIOUS MENTAL ILLNESS 2765 01:40:00,920 --> 01:40:01,520 TREATMENT. 2766 01:40:01,520 --> 01:40:02,760 THESE ARE ALL ON THE SAMHSA 2767 01:40:02,760 --> 01:40:04,200 WEBSITE. 2768 01:40:04,200 --> 01:40:06,200 INFORMATION ABOUT EARLY SERIOUS 2769 01:40:06,200 --> 01:40:08,720 MENTAL ILLNESS, SNAPSHOT OF 2770 01:40:08,720 --> 01:40:10,040 EARLY SERIOUS MENTAL ILLNESS, 2771 01:40:10,040 --> 01:40:11,840 PROGRAMS IN THE UNITED STATES IN 2772 01:40:11,840 --> 01:40:14,000 2018, INFORMATION ABOUT MENTAL 2773 01:40:14,000 --> 01:40:16,080 DISORDERS, GLOSSARY OF TERMS, 2774 01:40:16,080 --> 01:40:19,160 SUBSTANCE USE TREATMENT LOCATER, 2775 01:40:19,160 --> 01:40:20,600 BEHAVIORAL HEALTH TREATMENT, 2776 01:40:20,600 --> 01:40:26,200 EARLY MENTAL ILLNESS TREATMENT. 2777 01:40:26,200 --> 01:40:27,520 REGARDING TRAUMA AND VIOLENCE, 2778 01:40:27,520 --> 01:40:29,840 SAMHSA HAS THE DISASTER DISTRESS 2779 01:40:29,840 --> 01:40:31,280 HELP LINE. 2780 01:40:31,280 --> 01:40:35,080 PROVIDES 24/7, 365-DAY A YEAR 2781 01:40:35,080 --> 01:40:36,040 CRISIS COUNSELING. 2782 01:40:36,040 --> 01:40:36,880 CONTINUED ALSO AVAILABLE IN 2783 01:40:36,880 --> 01:40:38,080 SPANISH AND FOR THE DEAF AND 2784 01:40:38,080 --> 01:40:45,320 HARD OF HEARING. 2785 01:40:45,320 --> 01:40:47,000 SAMHSA PROMOTES EARLY 2786 01:40:47,000 --> 01:40:48,560 INTERVENTION AND TREATMENT AS 2787 01:40:48,560 --> 01:40:49,880 HEALTHIER ALTERNATIVES TO 2788 01:40:49,880 --> 01:40:50,960 DETAINING PEOPLE WITH BEHAVIORAL 2789 01:40:50,960 --> 01:40:52,200 HEALTH CONDITIONS IN THE U.S. 2790 01:40:52,200 --> 01:40:53,200 JUSTICE SYSTEM. 2791 01:40:53,200 --> 01:40:56,240 IN DOING THIS WORK, SAMHSA 2792 01:40:56,240 --> 01:40:57,840 RECOGNIZES THE BALANCE OF PUBLIC 2793 01:40:57,840 --> 01:40:58,600 HEALTH AND PUBLIC SAFETY 2794 01:40:58,600 --> 01:41:01,840 PRIORITIES. 2795 01:41:01,840 --> 01:41:03,280 REGARDING CRIMINAL JUSTICE FOR 2796 01:41:03,280 --> 01:41:04,400 JUVENILES, PEOPLE WITH MENTAL 2797 01:41:04,400 --> 01:41:06,280 AND SUBSTANCE USE DISORDERS ARE 2798 01:41:06,280 --> 01:41:07,480 OVERREPRESENTED IN THE JUSTICE 2799 01:41:07,480 --> 01:41:08,680 SYSTEM. 2800 01:41:08,680 --> 01:41:10,080 YOU CAN LEARN MORE ABOUT 2801 01:41:10,080 --> 01:41:14,120 CRIMINAL AND JUVENILE JUSTICE AT 2802 01:41:14,120 --> 01:41:21,400 SAMHSA.GOV AT THIS LINK BELOW. 2803 01:41:21,400 --> 01:41:22,880 SAMHSA'S CRIMINAL AND JUVENILE 2804 01:41:22,880 --> 01:41:23,760 JUSTICE CONTINUED. 2805 01:41:23,760 --> 01:41:25,360 LEARN ABOUT SAMHSA-FUNDED GRANT 2806 01:41:25,360 --> 01:41:26,880 PROGRAMS THAT ADDRESS BEHAVIORAL 2807 01:41:26,880 --> 01:41:28,520 HEALTH AND CRIMINAL JUSTICE 2808 01:41:28,520 --> 01:41:28,800 ISSUES. 2809 01:41:28,800 --> 01:41:31,000 LAW ENFORCEMENT AND BEHAVIORAL 2810 01:41:31,000 --> 01:41:32,240 HEALTH PARTNERSHIPS FOR EARLY 2811 01:41:32,240 --> 01:41:33,080 DIVERSION. 2812 01:41:33,080 --> 01:41:34,040 TRANSFORMING LIVES THROUGH 2813 01:41:34,040 --> 01:41:35,080 SUPPORTED EMPLOYMENT. 2814 01:41:35,080 --> 01:41:37,640 ADULT TREATMENT DRUG COURTS. 2815 01:41:37,640 --> 01:41:41,000 FAMILY TREATMENT COURTS. 2816 01:41:41,000 --> 01:41:43,760 OFFENDER RE-ENTRY PROGRAM. 2817 01:41:43,760 --> 01:41:47,280 SAMHSA ALSO HAS A SEQUENTIAL 2818 01:41:47,280 --> 01:41:47,720 INTERCEPT MODEL. 2819 01:41:47,720 --> 01:41:50,120 LEARN ABOUT THIS ESSENTIAL TOOL 2820 01:41:50,120 --> 01:41:51,440 THAT HELPS COMMUNITIES BETTER 2821 01:41:51,440 --> 01:41:52,880 SERVE INDIVIDUALS WITH MENTAL 2822 01:41:52,880 --> 01:41:54,640 AND SUBSTANCE USE PROBLEMS WHO 2823 01:41:54,640 --> 01:41:56,160 COME INTO CONTACT WITH THE 2824 01:41:56,160 --> 01:42:00,880 CRIMINAL JUSTICE SYSTEM. 2825 01:42:00,880 --> 01:42:03,000 WE ALSO HAVE RESOURCES FOR 2826 01:42:03,000 --> 01:42:04,200 SUICIDE PREVENTION. 2827 01:42:04,200 --> 01:42:08,040 THERE'S A TRANS LINE. 2828 01:42:08,040 --> 01:42:09,680 LIFELINE IS A NATIONAL TRANS-LED 2829 01:42:09,680 --> 01:42:10,680 ORGANIZATION DEDICATED TO 2830 01:42:10,680 --> 01:42:12,040 IMPROVING THE QUALITY OF TRANS 2831 01:42:12,040 --> 01:42:13,760 LIVES BY RESPONDING TO THE 2832 01:42:13,760 --> 01:42:15,120 CRITICAL NEEDS OF OUR COMMUNITY 2833 01:42:15,120 --> 01:42:17,520 WITH DIRECT SERVICE, MATERIAL 2834 01:42:17,520 --> 01:42:23,000 SUPPORT, ADVOCACY AND EDUCATION. 2835 01:42:23,000 --> 01:42:24,240 THE ZERO SUICIDE, THE 2836 01:42:24,240 --> 01:42:26,640 FOUNDATIONAL BELIEF OF ZERO 2837 01:42:26,640 --> 01:42:27,760 SUICIDE IS THAT SUICIDE DEATHS 2838 01:42:27,760 --> 01:42:28,760 FOR INDIVIDUALS UNDER THE CARE 2839 01:42:28,760 --> 01:42:30,120 OF HEALTH AND BEHAVIORAL HEALTH 2840 01:42:30,120 --> 01:42:32,480 SYSTEMS ARE PREVENTABLE. 2841 01:42:32,480 --> 01:42:37,360 WE ALSO HAVE THE BE THE 1 TO, 2842 01:42:37,360 --> 01:42:38,360 THE NATIONAL SUICIDE PREVENTION 2843 01:42:38,360 --> 01:42:40,000 LIFELINE'S MESSAGE FOR NATIONAL 2844 01:42:40,000 --> 01:42:40,600 SUICIDE PREVENTION MONTH AND 2845 01:42:40,600 --> 01:42:41,840 BEYOND, SPREADING THE WORD ABOUT 2846 01:42:41,840 --> 01:42:44,080 ACTIONS WE CAN ALL TAKE TO 2847 01:42:44,080 --> 01:42:45,280 PREVENT SUICIDE. 2848 01:42:45,280 --> 01:42:47,840 THANK YOU FOR TAKING THE TIME TO 2849 01:42:47,840 --> 01:42:50,200 ATTEND THIS PRESENTATION TODAY. 2850 01:42:50,200 --> 01:43:00,240 MY CONTACT INFORMATION IS BELOW. 2851 01:43:00,240 --> 01:43:01,120 >> HELLO. 2852 01:43:01,120 --> 01:43:02,560 MY NAME IS KRISTINA WEST. 2853 01:43:02,560 --> 01:43:03,760 AND I'M GOING TO TALK TODAY 2854 01:43:03,760 --> 01:43:09,000 ABOUT ASPE'S WORK IN FETAL 2855 01:43:09,000 --> 01:43:13,160 ALCOHOL SYNDROME DISORDER AND 2856 01:43:13,160 --> 01:43:14,880 FETAL ALCOHOL SYNDROME AND 2857 01:43:14,880 --> 01:43:15,520 ALCOHOL USE. 2858 01:43:15,520 --> 01:43:17,280 FIRST I WANTED TO TELL YOU A 2859 01:43:17,280 --> 01:43:22,200 LITTLE MORE ABOUT OUR OFFICE. 2860 01:43:22,200 --> 01:43:29,920 WHICH ADVISES THE SECRETARY ON 2861 01:43:29,920 --> 01:43:31,520 POLICY, AND PROVIDES ADVICE ON 2862 01:43:31,520 --> 01:43:32,160 ECONOMIC POLICY. 2863 01:43:32,160 --> 01:43:33,880 I WORK IN THE OFFICE OF 2864 01:43:33,880 --> 01:43:37,320 BEHAVIORAL HEALTH DISABILITY AND 2865 01:43:37,320 --> 01:43:40,000 AGING POLICY, WHICH INCLUDES 2866 01:43:40,000 --> 01:43:42,320 SUBSTANCE USE AND PRENATAL 2867 01:43:42,320 --> 01:43:52,640 SUBSTANCE EXPOSURES, INCLUDING 2868 01:43:52,640 --> 01:43:53,920 FETAL ALCOHOL SYNDROME DISORDER. 2869 01:43:53,920 --> 01:43:55,880 WE HAVE A LARGE PORTFOLIO OF 2870 01:43:55,880 --> 01:43:59,400 WORK AND WE HAVE COORDINATED 2871 01:43:59,400 --> 01:44:00,720 ACTIVITY -- CROSS-AGENCY 2872 01:44:00,720 --> 01:44:02,160 ACTIVITIES ACROSS THE DEPARTMENT 2873 01:44:02,160 --> 01:44:04,680 RELEVANT TO CHILD MENTAL HEALTH 2874 01:44:04,680 --> 01:44:08,080 AND SUBSTANCE USE. 2875 01:44:08,080 --> 01:44:10,440 SO FASD IS INCLUDED IN ASPE'S 2876 01:44:10,440 --> 01:44:11,960 BROAD SUBSTANCE USE PORTFOLIO, 2877 01:44:11,960 --> 01:44:13,040 INCLUDING THE RESEARCH WORK THAT 2878 01:44:13,040 --> 01:44:13,400 WE DO. 2879 01:44:13,400 --> 01:44:17,720 IN ADDITION, ASPE LEADS THE 2880 01:44:17,720 --> 01:44:19,120 FEDERAL PRENATAL SUBSTANCE 2881 01:44:19,120 --> 01:44:21,640 EXPOSURE WORK GROUP, WITH 2882 01:44:21,640 --> 01:44:23,040 REPRESENTATIVES ACROSS -- FROM 2883 01:44:23,040 --> 01:44:26,720 ACROSS HHS, AND THE WORK GROUP 2884 01:44:26,720 --> 01:44:28,280 SERVES AS A FORUM FOR FEDERAL 2885 01:44:28,280 --> 01:44:31,400 STAFF TO SHARE UPDATES AND GET 2886 01:44:31,400 --> 01:44:36,760 FEEDBACK ON PROPOSED PROGRAMS IN 2887 01:44:36,760 --> 01:44:37,920 SUD PREVENTION AND TREATMENT 2888 01:44:37,920 --> 01:44:39,520 INCLUDING ALCOHOL USE AMONG 2889 01:44:39,520 --> 01:44:41,520 PREGNANT AND POSTPARTUM WOMEN 2890 01:44:41,520 --> 01:44:45,560 AND REPRODUCTIVE AGE WOMEN. 2891 01:44:45,560 --> 01:44:48,400 BEFORE I CONTINUE, I WANT TO 2892 01:44:48,400 --> 01:44:50,360 ACKNOWLEDGE THAT THIS WEEK IS 2893 01:44:50,360 --> 01:44:56,160 BLACK MATERNAL HEALTH WEEK, AND 2894 01:44:56,160 --> 01:44:59,520 WE KNOW THAT BLACK WOMEN HAVE -- 2895 01:44:59,520 --> 01:45:01,480 WITH SUD HAVE MORE BARRIERS TO 2896 01:45:01,480 --> 01:45:06,440 ACCESSING TREATMENT AND ACCESS 2897 01:45:06,440 --> 01:45:07,640 TREATMENT AT LOWER INTERVALS 2898 01:45:07,640 --> 01:45:08,840 THAN THE REST OF THE POPULATION. 2899 01:45:08,840 --> 01:45:10,880 AND IN THAT CONTEXT, IT'S 2900 01:45:10,880 --> 01:45:14,520 IMPORTANT TO THINK OF THOSE THAT 2901 01:45:14,520 --> 01:45:15,560 HAVE ALCOHOL USE DISORDER AND 2902 01:45:15,560 --> 01:45:19,200 HOW WE CAN IMPROVE ACCESS TO 2903 01:45:19,200 --> 01:45:20,680 TREATMENT FOR BLACK WOMEN WITH 2904 01:45:20,680 --> 01:45:22,440 ALCOHOL USE DISORDER AMONG OTHER 2905 01:45:22,440 --> 01:45:25,720 POPULATIONS. 2906 01:45:25,720 --> 01:45:27,760 SO THE NEXT ONE THAT WE DID THAT 2907 01:45:27,760 --> 01:45:29,840 I'M GOING TO PRESENT IS FINDINGS 2908 01:45:29,840 --> 01:45:33,120 FROM A RESEARCH STUDY ON 2909 01:45:33,120 --> 01:45:34,760 POSTPARTUM USE OF SERVICES 2910 01:45:34,760 --> 01:45:38,080 DEPENDING ON MEDICAID COVERAGE. 2911 01:45:38,080 --> 01:45:43,200 FOR THAT STUDY, WE USED A LARGE 2912 01:45:43,200 --> 01:45:45,120 MEDICAID CLAIMS DATASET FOR 2913 01:45:45,120 --> 01:45:50,800 THREE YEARS, AND WOMEN THAT HAD 2914 01:45:50,800 --> 01:45:53,000 LOST COVERAGE POSTPARTUM VERSUS 2915 01:45:53,000 --> 01:45:54,640 WITHIN 90 DAYS POSTPARTUM VERSUS 2916 01:45:54,640 --> 01:45:56,720 THOSE THAT HAVE NOT. 2917 01:45:56,720 --> 01:46:01,520 AND WHAT WE FOUND WAS THAT 2918 01:46:01,520 --> 01:46:02,520 BEHAVIORAL HEALTH USE WAS LOWER 2919 01:46:02,520 --> 01:46:06,760 AMONG THOSE WHO LOST MEDICAID 2920 01:46:06,760 --> 01:46:07,040 COVERAGE. 2921 01:46:07,040 --> 01:46:08,560 SPECIFICALLY THERE WAS LESS USE 2922 01:46:08,560 --> 01:46:10,640 OF OUTPATIENT VISITS FOR 2923 01:46:10,640 --> 01:46:13,360 SUBSTANCE USE DISORDER, LESS USE 2924 01:46:13,360 --> 01:46:15,400 OF MENTAL HEALTH-RELATED 2925 01:46:15,400 --> 01:46:19,880 OUTPATIENT VISITS, E.D. VISITS 2926 01:46:19,880 --> 01:46:21,640 AND LOWER USE OF ROUTINE 2927 01:46:21,640 --> 01:46:22,840 POSTPARTUM CARE. 2928 01:46:22,840 --> 01:46:24,760 FOR WOMEN WITH SUBSTANCE USE 2929 01:46:24,760 --> 01:46:26,640 DISORDER, WE INCLUDED THOSE 2930 01:46:26,640 --> 01:46:28,520 WOMEN WITH ALCOHOL USE DISORDER. 2931 01:46:28,520 --> 01:46:29,800 POSTPARTUM CARE HAS BEEN FOUND 2932 01:46:29,800 --> 01:46:32,520 BEFORE TO BE A GATEWAY TO 2933 01:46:32,520 --> 01:46:36,080 ACCESSING TREATMENT. 2934 01:46:36,080 --> 01:46:38,960 IN OUR STUDY, THE FINDINGS 2935 01:46:38,960 --> 01:46:42,200 SUGGEST THAT WHEN THERE'S NO 2936 01:46:42,200 --> 01:46:43,560 COVERAGE POSTPARTUM BEYOND THE 2937 01:46:43,560 --> 01:46:48,200 60 DAYS, THAT LIMITS ACCESS TO 2938 01:46:48,200 --> 01:46:49,640 POSTPARTUM CARE, IN ADDITION TO 2939 01:46:49,640 --> 01:46:52,960 LIMITED ACCESS TO TREATMENT. 2940 01:46:52,960 --> 01:46:56,920 THE IMPORTANCE OF THE STUDY IS 2941 01:46:56,920 --> 01:46:58,560 FOR THE POLICY IMPLICATIONS 2942 01:46:58,560 --> 01:47:03,080 WHICH HAVE TO DO WITH EXTENDING 2943 01:47:03,080 --> 01:47:04,520 POSTPARTUM COVERAGE IN MEDICAID. 2944 01:47:04,520 --> 01:47:08,120 AS YOU KNOW, THE AMERICAN RESCUE 2945 01:47:08,120 --> 01:47:12,120 PLAN AND CONSOLIDATED 2946 01:47:12,120 --> 01:47:13,320 APPROPRIATIONS ACT MOST RECENTLY 2947 01:47:13,320 --> 01:47:18,240 CREATED A PERMANENT OPTION FOR 2948 01:47:18,240 --> 01:47:19,920 MEDICAID IN STATES FOR MEDICAID 2949 01:47:19,920 --> 01:47:21,640 TO EXTEND POSTPARTUM COVERAGE TO 2950 01:47:21,640 --> 01:47:22,920 12 MONTHS. 2951 01:47:22,920 --> 01:47:26,240 THIS CAN REALLY CHANGE ACCESS TO 2952 01:47:26,240 --> 01:47:28,120 BEHAVIORAL HEALTH TREATMENT FOR 2953 01:47:28,120 --> 01:47:30,960 WOMEN WITH SUD, ESPECIALLY 2954 01:47:30,960 --> 01:47:34,800 BECAUSE MEDICAID COVERS 40% OF 2955 01:47:34,800 --> 01:47:41,040 ALL BIRTHS IN THE U.S., AND IS A 2956 01:47:41,040 --> 01:47:42,160 PARTNER IN BEHAVIORAL HEALTH 2957 01:47:42,160 --> 01:47:43,800 TREATMENT AS WELL. 2958 01:47:43,800 --> 01:47:47,680 NEXT I WILL TALK ABOUT WORK THAT 2959 01:47:47,680 --> 01:47:50,440 WE DID ON FETAL ALCOHOL SYNDROME 2960 01:47:50,440 --> 01:47:54,120 DISORDERS AND PSYCHOTROPIC 2961 01:47:54,120 --> 01:47:54,600 MEDICATION USE. 2962 01:47:54,600 --> 01:47:59,680 WE DID THAT WORK USING MEDICAID 2963 01:47:59,680 --> 01:48:01,000 AND COMMERCIAL CLAIMS DATABASES, 2964 01:48:01,000 --> 01:48:02,400 BUT THE REASON WHY WE DID THAT 2965 01:48:02,400 --> 01:48:05,680 IS BECAUSE OF LIMITED STUDYS 2966 01:48:05,680 --> 01:48:08,320 THAT HAVE BEEN DONE WITH 2967 01:48:08,320 --> 01:48:09,200 PSYCHOTROPIC MEDICATION AMONG 2968 01:48:09,200 --> 01:48:11,920 THIS POPULATION, DESPITE THE 2969 01:48:11,920 --> 01:48:16,200 FACT -- AND THE FACT THAT A LOT 2970 01:48:16,200 --> 01:48:18,080 OF THEM PARTICIPATE IN CHILD 2971 01:48:18,080 --> 01:48:23,040 WELFARE, AND PSYCHOTROPIC USE 2972 01:48:23,040 --> 01:48:23,880 HAS BEEN A CONCERN WITH THAT 2973 01:48:23,880 --> 01:48:25,080 POPULATION FOR YEARS. 2974 01:48:25,080 --> 01:48:28,240 SO WHAT WE DID IS THAT WE 2975 01:48:28,240 --> 01:48:29,640 SEPARATED THE SAMPLE BETWEEN 2976 01:48:29,640 --> 01:48:32,240 THOSE THAT WERE ON MEDICAID AND 2977 01:48:32,240 --> 01:48:33,000 PRIVATE INSURANCE. 2978 01:48:33,000 --> 01:48:36,960 THE BLUE COLUMN REPRESENTS KIDS 2979 01:48:36,960 --> 01:48:40,280 WITH FASD, WHICH MAY HAVE 2980 01:48:40,280 --> 01:48:42,000 CO-OCCURRING OR MAY NOT HAVE 2981 01:48:42,000 --> 01:48:43,000 CO-OCCURRING CONDITIONS. 2982 01:48:43,000 --> 01:48:46,960 AND AS YOU SEE SLIGHTLY MORE ON 2983 01:48:46,960 --> 01:48:48,560 MEDICAID USED PSYCHOTROPIC 2984 01:48:48,560 --> 01:48:49,320 MEDICATION. 2985 01:48:49,320 --> 01:48:53,040 THE ORANGE COLUMN ARE CHILDREN 2986 01:48:53,040 --> 01:48:55,080 WITH FASD AND CO-OCCURRING 2987 01:48:55,080 --> 01:48:57,480 MENTAL HEALTH DISOD THEY USED 2988 01:48:57,480 --> 01:48:58,680 PSYCHOTROPIC MEDICATIONS MOST 2989 01:48:58,680 --> 01:49:02,720 COMPARED TO THE OTHER GROUPS. 2990 01:49:02,720 --> 01:49:04,840 THE GREY ONE IS KIDS WITH FASD 2991 01:49:04,840 --> 01:49:06,400 AND NO CO-OCCURRING MENTAL 2992 01:49:06,400 --> 01:49:07,840 HEALTH CONDITION. 2993 01:49:07,840 --> 01:49:09,680 AND FOR THOSE THAT DON'T HAVE 2994 01:49:09,680 --> 01:49:16,320 MENTAL HEALTH CONDITION, 45% ON 2995 01:49:16,320 --> 01:49:18,200 MEDICAID USE PSYCHOTROPIC 2996 01:49:18,200 --> 01:49:19,120 MEDICATION. 2997 01:49:19,120 --> 01:49:21,440 THAT'S HIGHER THAN THOSE ON 2998 01:49:21,440 --> 01:49:22,960 PRIVATE INSURANCE WITH FASD ONLY 2999 01:49:22,960 --> 01:49:25,560 IN THE GREY COLUMN THAT USE 3000 01:49:25,560 --> 01:49:27,880 PSYCHOTROPIC MEDICATION, WHICH 3001 01:49:27,880 --> 01:49:30,280 IS ONLY 38%. 3002 01:49:30,280 --> 01:49:34,960 SO OVERALL, WE SEE SLIDE SLIETLY 3003 01:49:34,960 --> 01:49:37,320 HIGHER USE IN MEDICAID, BUT THE 3004 01:49:37,320 --> 01:49:39,360 DIFFERENCES ARE NOT DRAMATIC 3005 01:49:39,360 --> 01:49:41,760 BETWEEN THE TWO GROUPS, WHICH 3006 01:49:41,760 --> 01:49:46,200 MEA SUGGMAY SUGGEST DEEPER STRUL 3007 01:49:46,200 --> 01:49:47,400 ISSUES BEYOND INSURANCE 3008 01:49:47,400 --> 01:49:48,800 COVERAGE, TYPE OF INSURANCE 3009 01:49:48,800 --> 01:49:54,720 COVERAGE. 3010 01:49:54,720 --> 01:49:56,760 WE WANTED TO SEE WHAT 3011 01:49:56,760 --> 01:49:58,040 CO-OCCURRING MEDICAL CONDITIONS 3012 01:49:58,040 --> 01:49:59,600 OCCUR AMONG CHILDREN WITH FASD 3013 01:49:59,600 --> 01:50:02,240 USING PSYCHOTROPIC MEDICATION. 3014 01:50:02,240 --> 01:50:05,800 FIRST MOST COMMON WAS 3015 01:50:05,800 --> 01:50:06,240 ENCEPHALOPATHY. 3016 01:50:06,240 --> 01:50:13,880 AFTER THAT WAS ADHD. 3017 01:50:13,880 --> 01:50:15,720 ADHD IS QUITE COMMON AMONG 3018 01:50:15,720 --> 01:50:16,920 CHILDREN AND THERE HAVE BEEN 3019 01:50:16,920 --> 01:50:19,960 STUDIES SHOWING INCREASED 3020 01:50:19,960 --> 01:50:20,640 DIAGNOSIS, ESPECIALLY IN THE 3021 01:50:20,640 --> 01:50:23,000 WAKE OF COVID AND USE OF 3022 01:50:23,000 --> 01:50:24,400 PSYCHOTROPIC MEDICATION. 3023 01:50:24,400 --> 01:50:29,520 THE FACT THAT ADHD IS SO 3024 01:50:29,520 --> 01:50:32,040 COMMONLY SEEN AMONG THIS 3025 01:50:32,040 --> 01:50:33,840 POPULATION SUGGESTS THAT 3026 01:50:33,840 --> 01:50:36,360 CHILDREN WITH ADHD SHOULD BE 3027 01:50:36,360 --> 01:50:38,560 SCREENED FOR FETAL ALCOHOL 3028 01:50:38,560 --> 01:50:39,880 SYNDROME DISORDER, ESPECIALLY 3029 01:50:39,880 --> 01:50:42,720 BECAUSE MANY OF THOSE DISORDERS 3030 01:50:42,720 --> 01:50:46,000 ARE IDENTIFIED AT SCHOOL AGE AND 3031 01:50:46,000 --> 01:50:48,040 THERE ARE SCHOOL-BASED SUPPORTS 3032 01:50:48,040 --> 01:50:50,000 THAT PROVIDE SERVICES FOR 3033 01:50:50,000 --> 01:50:53,760 CHILDREN WITH DISABILITIES. 3034 01:50:53,760 --> 01:51:00,040 WE ALSO SEE HIGH PREVALENCE OF 3035 01:51:00,040 --> 01:51:01,120 EPILEPSY, ESPECIALLY AMONG KIDS 3036 01:51:01,120 --> 01:51:03,080 WITH MEDICAID, AND SOME OF THE 3037 01:51:03,080 --> 01:51:05,360 PSYCHOTROPIC MEDICATION CAN 3038 01:51:05,360 --> 01:51:06,400 ACTUALLY INCREASE THE THRESHOLD 3039 01:51:06,400 --> 01:51:08,720 FOR SEIZURES, SO THAT'S A 3040 01:51:08,720 --> 01:51:11,480 CONCERN IN TERMS OF MONITORING 3041 01:51:11,480 --> 01:51:14,360 PROPERTIES OF PSY PSYCHOTROPICS. 3042 01:51:14,360 --> 01:51:19,640 WE ALSO FOUND THAT ABOUT -- 3043 01:51:19,640 --> 01:51:22,360 BETWEEN 20 AND 25% OF KIDS WITH 3044 01:51:22,360 --> 01:51:23,960 FASD USING PSYCHOTROPIC 3045 01:51:23,960 --> 01:51:25,840 MEDICATION ALSO HAVE AUTISM 3046 01:51:25,840 --> 01:51:26,400 SPECTRUM DISORDERS. 3047 01:51:26,400 --> 01:51:30,800 THERE ARE LARGER STUDIES IN THIS 3048 01:51:30,800 --> 01:51:34,440 POPULATION BUT THIS IS THE FIRST 3049 01:51:34,440 --> 01:51:35,440 LARGER ONE THAT FINDS THAT 3050 01:51:35,440 --> 01:51:40,560 PREVALENCE. 3051 01:51:40,560 --> 01:51:42,000 THE IMPLICATIONS OF THE STUDY IS 3052 01:51:42,000 --> 01:51:43,480 MOST IMPORTANTLY THAT 3053 01:51:43,480 --> 01:51:45,560 PSYCHOTROPIC USE AMONG KIDS WITH 3054 01:51:45,560 --> 01:51:48,160 FASD SHOULD BE MONITORED. 3055 01:51:48,160 --> 01:51:50,120 FOR SOME CHILDREN WITH FASD, THE 3056 01:51:50,120 --> 01:51:52,640 MANIFESTATIONS AND THE SYMPTOMS 3057 01:51:52,640 --> 01:51:54,280 REQUIRE -- MAY REQUIRE 3058 01:51:54,280 --> 01:51:57,120 PSYCHOTROPIC USE. 3059 01:51:57,120 --> 01:51:59,800 BUT THERE HAS TO BE ADMINISTERED 3060 01:51:59,800 --> 01:52:01,480 WITH PRUDENCE GIVEN THE RISK OF 3061 01:52:01,480 --> 01:52:04,200 SIDE EFFECTS. 3062 01:52:04,200 --> 01:52:05,960 PSYCHOTROPIC -- MOST IMPORTANTLY 3063 01:52:05,960 --> 01:52:07,120 PSYCHOTROPIC MEDICATION SHOULD 3064 01:52:07,120 --> 01:52:14,240 NOT BE A SUBSTITUTE FOR KNOWN FR 3065 01:52:14,240 --> 01:52:14,880 NON-PHARMACOLOGICAL INTERVENTION 3066 01:52:14,880 --> 01:52:16,280 AND WE HAVE STUDIES IN THE PAST 3067 01:52:16,280 --> 01:52:19,120 FEW YEARS LOOKING AT THE 3068 01:52:19,120 --> 01:52:20,560 EVIDENCE THAT HAVE ESTABLISHED 3069 01:52:20,560 --> 01:52:24,680 MORE EVIDENCE ON PSYCHOSOCIAL 3070 01:52:24,680 --> 01:52:25,760 INTERVENTIONS AND OTHER 3071 01:52:25,760 --> 01:52:27,080 INTERVENTIONS SUCH AS PARENT 3072 01:52:27,080 --> 01:52:28,480 EDUCATION, PARENT-CHILD 3073 01:52:28,480 --> 01:52:30,120 INTERACTION THERAPY, SCHOOL 3074 01:52:30,120 --> 01:52:31,760 INTERVENTIONS AND DEVELOPMENTAL 3075 01:52:31,760 --> 01:52:33,080 THERAPIES, WHICH SHOULD BE 3076 01:52:33,080 --> 01:52:37,200 ADMINISTERED TO THIS POPULATION. 3077 01:52:37,200 --> 01:52:38,480 ALONE OR TOGETHER WITH 3078 01:52:38,480 --> 01:52:39,400 PSYCHOTROPIC MEDICATION. 3079 01:52:39,400 --> 01:52:40,240 AND MOST IMPORTANTLY, THERE 3080 01:52:40,240 --> 01:52:42,920 NEEDS TO BE PROVIDER EDUCATION 3081 01:52:42,920 --> 01:52:44,840 ON THE JUDICIOUS USE OF 3082 01:52:44,840 --> 01:52:45,680 MEDICATION, ESPECIALLY 3083 01:52:45,680 --> 01:52:47,000 CONSIDERING THE HIGH PERCENTAGE 3084 01:52:47,000 --> 01:52:49,960 OF THOSE WITH FASD ONLY THAT ARE 3085 01:52:49,960 --> 01:52:53,960 USE BEING PSYCHOTROPICS. 3086 01:52:53,960 --> 01:52:56,560 AND FINALLY, I WANTED TO TALK 3087 01:52:56,560 --> 01:52:58,320 ABOUT TOPICS THAT ASPE IS 3088 01:52:58,320 --> 01:53:01,280 FOLLOWING IN RELATION TO FASD. 3089 01:53:01,280 --> 01:53:05,760 WE ARE VERY ESPECIALLY RELEVANT 3090 01:53:05,760 --> 01:53:07,720 TO BEHAVIORAL HEALTH SERVICE 3091 01:53:07,720 --> 01:53:10,520 USE, WHICH HAS THE UNMET NEED 3092 01:53:10,520 --> 01:53:11,280 FOR BEHAVIORAL HEALTH SERVICES 3093 01:53:11,280 --> 01:53:15,840 HAS INCREASED IN GENERAL AMONG 3094 01:53:15,840 --> 01:53:17,960 CHILDREN, BUT THERE IS LESS 3095 01:53:17,960 --> 01:53:21,200 KNOWN ABOUT THOSE WITH FASD. 3096 01:53:21,200 --> 01:53:23,480 WE ARE ALSO REALLY INTERESTED IN 3097 01:53:23,480 --> 01:53:24,800 FOLLOWING HEALTH EQUITY AND 3098 01:53:24,800 --> 01:53:26,800 ACCESS TO CARE I MENTIONED 3099 01:53:26,800 --> 01:53:29,280 EARLIER THAT THIS WEEK IS BLACK 3100 01:53:29,280 --> 01:53:31,760 MATERNAL HEALTH WEEK. 3101 01:53:31,760 --> 01:53:34,520 AND SO IT'S ESPECIALLY IMPORTANT 3102 01:53:34,520 --> 01:53:38,600 TO LOOK AT BLACK POPULATION OF 3103 01:53:38,600 --> 01:53:40,720 REPRODUCTIVE AGE WOMEN WITH SUD 3104 01:53:40,720 --> 01:53:42,880 AND PREVENTION AND TREATMENT. 3105 01:53:42,880 --> 01:53:44,760 WE ARE REALLY INTERESTED ALSO IN 3106 01:53:44,760 --> 01:53:46,480 THE PEDIATRIC MENTAL HEALTH 3107 01:53:46,480 --> 01:53:49,000 WORKFORCE CAPACITY TO DIAGNOSIS 3108 01:53:49,000 --> 01:53:51,920 FASD, AND TO TREAT THIS 3109 01:53:51,920 --> 01:53:54,440 POPULATION, AND FINALLY, 3110 01:53:54,440 --> 01:53:55,080 SCHOOL-BASED BEHAVIORAL HEALTH 3111 01:53:55,080 --> 01:53:57,680 SERVICES HAVE BEEN CRUCIAL IN 3112 01:53:57,680 --> 01:53:58,480 IDENTIFYING AND DELIVERING 3113 01:53:58,480 --> 01:54:06,760 SERVICES TO THIS POPULATION, AND 3114 01:54:06,760 --> 01:54:10,160 WITH THE -- POLICY ACT, WE SEE 3115 01:54:10,160 --> 01:54:12,240 THERE HAS BEEN ADDITIONAL 3116 01:54:12,240 --> 01:54:14,040 RESOURCES DEDICATED TO 3117 01:54:14,040 --> 01:54:14,640 SCHOOL-BASED BEHAVIORAL HEALTH 3118 01:54:14,640 --> 01:54:19,520 SERVICES WHICH ARE IMPORTANT. 3119 01:54:19,520 --> 01:54:22,480 SO THIS IS MY CONTACT 3120 01:54:22,480 --> 01:54:22,840 INFORMATION. 3121 01:54:22,840 --> 01:54:25,200 I'M HAPPY TO ANSWER ANY 3122 01:54:25,200 --> 01:54:25,640 QUESTIONS. 3123 01:54:25,640 --> 01:54:26,720 FEEL FREE TO REACH OUT. 3124 01:54:26,720 --> 01:54:33,520 THANK YOU. 3125 01:54:33,520 --> 01:54:34,880 >> THANK YOU, EVERYBODY, THANK 3126 01:54:34,880 --> 01:54:37,880 YOU FOR GREAT PRESENTATIONS. 3127 01:54:37,880 --> 01:54:39,600 IT IS VERY INTERESTING TO HEAR 3128 01:54:39,600 --> 01:54:42,120 ABOUT NEW RESEARCH ON MEDICATION 3129 01:54:42,120 --> 01:54:44,360 USE, PUBLIC POLICY RESEARCH, AND 3130 01:54:44,360 --> 01:54:46,040 CONTINUING EFFORTS TO INCREASE 3131 01:54:46,040 --> 01:54:47,840 EDUCATION IN PUBLIC AWARENESS, 3132 01:54:47,840 --> 01:54:49,400 AND I'M VERY EXCITED TO HEAR 3133 01:54:49,400 --> 01:54:52,920 ABOUT NEW CREATIONS ABOUT FASD 3134 01:54:52,920 --> 01:54:55,880 THAT CDC HAVE BEEN ABLE TO ADD 3135 01:54:55,880 --> 01:54:58,200 TO SURVEYS AND THE DATA WILL BE 3136 01:54:58,200 --> 01:54:59,680 AVAILABLE SOON. 3137 01:54:59,680 --> 01:55:03,600 WITH THAT, I WOULD LIKE TO OPEN 3138 01:55:03,600 --> 01:55:04,160 DISCUSSION. 3139 01:55:04,160 --> 01:55:06,240 PLEASE TURN ON YOUR CAMERAS. 3140 01:55:06,240 --> 01:55:10,240 WE APPRECIATE EVERYBODY, WE CAN 3141 01:55:10,240 --> 01:55:11,880 SEE EVERYONE ON CAMERA. 3142 01:55:11,880 --> 01:55:13,520 REMINDER FOR VIDEOCAST 3143 01:55:13,520 --> 01:55:15,480 PARTICIPANTS, YOU CAN SUBMIT 3144 01:55:15,480 --> 01:55:20,040 YOUR QUESTIONS AND COMMENTS ON 3145 01:55:20,040 --> 01:55:21,440 FORM ONLINE AND WE WILL DO OUR 3146 01:55:21,440 --> 01:55:22,880 BEST TO BRING TO THE MEETING. 3147 01:55:22,880 --> 01:55:24,360 WITH THAT, I WILL BEGIN 3148 01:55:24,360 --> 01:55:27,840 DISCUSSION AND I CAN SEE A HAND 3149 01:55:27,840 --> 01:55:29,720 RAISED. 3150 01:55:29,720 --> 01:55:30,680 DR. TRISH POWELL, PLEASE GO 3151 01:55:30,680 --> 01:55:30,880 AHEAD. 3152 01:55:30,880 --> 01:55:32,440 >> THANKS. 3153 01:55:32,440 --> 01:55:34,920 A COUPLE OF TIMES THE ISSUE OF 3154 01:55:34,920 --> 01:55:36,560 HEALTH EQUITY HAS BEEN RAISED, 3155 01:55:36,560 --> 01:55:38,720 AND IT'S BEEN RAISED BOTH ABOUT 3156 01:55:38,720 --> 01:55:40,760 SCREENING FOR PREVENTION AND 3157 01:55:40,760 --> 01:55:42,000 TREATMENT, AND THERE WAS A 3158 01:55:42,000 --> 01:55:44,360 RECENT STUDY THAT SAYS BLACK 3159 01:55:44,360 --> 01:55:48,200 WOMEN MAY BE SCREENED MORE FOR 3160 01:55:48,200 --> 01:55:49,920 SUBSTANCE USE 3161 01:55:49,920 --> 01:55:50,360 DISPROPORTIONATELY. 3162 01:55:50,360 --> 01:55:51,680 SO I WOULD JUST ENCOURAGE US ALL 3163 01:55:51,680 --> 01:55:53,600 TO THINK THAT WE REALLY WANT 3164 01:55:53,600 --> 01:55:55,920 SCREENING FOR EVERYBODY, SO THAT 3165 01:55:55,920 --> 01:55:58,480 WE'RE PROTECTING ALL CHILDREN 3166 01:55:58,480 --> 01:56:00,080 AND NOT TO INADVERTENTLY 3167 01:56:00,080 --> 01:56:02,640 STIGMATIZE, BUT THEN TO MAKE 3168 01:56:02,640 --> 01:56:03,640 SURE INTERVENTION AND TREATMENT 3169 01:56:03,640 --> 01:56:04,720 OPTIONS ARE AVAILABLE FOR ALL AS 3170 01:56:04,720 --> 01:56:04,960 WELL. 3171 01:56:04,960 --> 01:56:07,200 SO I JUST WANTED TO MAKE THAT 3172 01:56:07,200 --> 01:56:11,040 COMMENT THAT, YOU KNOW, THE 3173 01:56:11,040 --> 01:56:12,600 ISSUE OF NOT INCREASING STIGMA 3174 01:56:12,600 --> 01:56:14,320 AROUND IT, BUT TO MAKE SCREENING 3175 01:56:14,320 --> 01:56:17,320 JUST A NORMAL PROCEDURE FOR ALL 3176 01:56:17,320 --> 01:56:23,240 PREGNANT PEOPLE. 3177 01:56:23,240 --> 01:56:23,720 >> THANK YOU, TRISH. 3178 01:56:23,720 --> 01:56:24,760 THANK YOU FOR THE COMMENT. 3179 01:56:24,760 --> 01:56:28,000 I KNOW THERE ARE MORE QUESTIONS 3180 01:56:28,000 --> 01:56:31,400 AND COMMENTS. 3181 01:56:31,400 --> 01:56:33,480 DAWN LEVINSON, I THOUGHT YOU 3182 01:56:33,480 --> 01:56:34,120 WERE GOING TO -- 3183 01:56:34,120 --> 01:56:35,640 >> THANK YOU. 3184 01:56:35,640 --> 01:56:37,160 THANKS, TATIANA. 3185 01:56:37,160 --> 01:56:39,440 YEAH, I WANTED TO -- BILL, I 3186 01:56:39,440 --> 01:56:41,640 KNOW THAT YOU'VE BEEN READING 3187 01:56:41,640 --> 01:56:42,720 THE QUESTIONS. 3188 01:56:42,720 --> 01:56:46,520 THERE WAS ONE -- I'M SCROLLING 3189 01:56:46,520 --> 01:56:47,320 THROUGH THE CHAT. 3190 01:56:47,320 --> 01:56:48,920 >> BILL, CAN YOU READ THE 3191 01:56:48,920 --> 01:56:51,280 QUESTION AND WE WILL LET DAWN 3192 01:56:51,280 --> 01:56:51,520 ANSWER? 3193 01:56:51,520 --> 01:56:53,760 >> SURE. 3194 01:56:53,760 --> 01:57:03,200 SO THIS IS A QUESTION FROM LIZ 3195 01:57:03,200 --> 01:57:03,960 MCCUE. 3196 01:57:03,960 --> 01:57:05,640 SHE SAID SHE WAS LISTENING 3197 01:57:05,640 --> 01:57:08,120 EARLIER AND ONLY HEARD ONE 3198 01:57:08,120 --> 01:57:09,240 DISCUSS SPECIFIC TRAINING FOR 3199 01:57:09,240 --> 01:57:11,280 CLINICIANS, IE, THE HRSA ECHO 3200 01:57:11,280 --> 01:57:11,520 PROJECT. 3201 01:57:11,520 --> 01:57:13,920 FOR THE OTHER SPEAKERS OR 3202 01:57:13,920 --> 01:57:15,680 PANELISTS, HAVE YOU AND YOUR 3203 01:57:15,680 --> 01:57:18,120 STAFF RECEIVED DETAILED TRAINING 3204 01:57:18,120 --> 01:57:21,200 ON FASD SPECIFICALLY TO HELP 3205 01:57:21,200 --> 01:57:22,080 IDENTIFY DIFFERENCES AND 3206 01:57:22,080 --> 01:57:23,120 APPROACHES FOR THIS POPULATION 3207 01:57:23,120 --> 01:57:24,880 RELATIVE TO THE PROGRAMS AND 3208 01:57:24,880 --> 01:57:28,040 YOUR INITIATIVES THAT YOUR TEAM 3209 01:57:28,040 --> 01:57:32,760 ARE WORKING ON, IT SEEMS IT IS 3210 01:57:32,760 --> 01:57:33,960 MORE A GENERAL APPROACH 3211 01:57:33,960 --> 01:57:35,760 PRESENTED ON IDD, ET CETERA, AS 3212 01:57:35,760 --> 01:57:39,600 WELL AS DRUGS RELATED, WHEN FASD 3213 01:57:39,600 --> 01:57:41,320 IS SPECIFIC AND DIFFERENT AND 3214 01:57:41,320 --> 01:57:42,640 NEEDS ITS OWN FOCUS IN THE 3215 01:57:42,640 --> 01:57:43,840 FUTURE. 3216 01:57:43,840 --> 01:57:49,640 >> THIS IS DAWN LEVINSON FROM 3217 01:57:49,640 --> 01:57:50,120 HRSA. 3218 01:57:50,120 --> 01:57:51,240 WHILE I DEFER TO MY OTHER 3219 01:57:51,240 --> 01:57:52,320 COLLEAGUES WHO MIGHT WANT TO 3220 01:57:52,320 --> 01:57:53,880 RESPOND, I GUESS I WANTED TO 3221 01:57:53,880 --> 01:57:56,880 FRAME A RESPONSE BY SAYING, YOU 3222 01:57:56,880 --> 01:57:59,720 KNOW, AS A REMINDER, MOST OF OUR 3223 01:57:59,720 --> 01:58:01,360 FEDERAL PROGRAMS FUND THINGS 3224 01:58:01,360 --> 01:58:03,400 THAT ARE LEGISLATIVELY REQUIRED 3225 01:58:03,400 --> 01:58:06,280 OF OUR AGENCIES, AND THAT HAVE 3226 01:58:06,280 --> 01:58:07,200 APPROPRIATIONS OR FUNDING 3227 01:58:07,200 --> 01:58:09,480 ATTACHED TO THEM, AND SO WITH 3228 01:58:09,480 --> 01:58:13,520 REGARD TO FASD-SPECIFIC 3229 01:58:13,520 --> 01:58:15,960 ACTIVITY, FOR OUR PROGRAM IN 3230 01:58:15,960 --> 01:58:18,000 HRSA, FOR EXAMPLE, WE HAVE A 3231 01:58:18,000 --> 01:58:25,960 LEGISLATIVE CALLOUT ACTUALLY IN 3232 01:58:25,960 --> 01:58:28,840 THE SPRANS, THE -- I'M BLANKING, 3233 01:58:28,840 --> 01:58:31,960 BUT OUR LEGISLATIVE REQUIREMENT 3234 01:58:31,960 --> 01:58:34,920 IN TITLE V, AND THERE IS A 3235 01:58:34,920 --> 01:58:36,880 CALLOUT FOR FASD SO THAT IS WHY 3236 01:58:36,880 --> 01:58:39,040 WE FUND FASD-SPECIFIC TRAININGS 3237 01:58:39,040 --> 01:58:40,000 BUT I DEFER TO MY OTHER 3238 01:58:40,000 --> 01:58:40,320 COLLEAGUES. 3239 01:58:40,320 --> 01:58:41,000 THANK YOU SO MUCH. 3240 01:58:41,000 --> 01:58:42,720 >> HI, THIS IS SHIN. 3241 01:58:42,720 --> 01:58:45,160 I CAN JUST -- AND I GUESS I'LL 3242 01:58:45,160 --> 01:58:46,880 LET MY OTHER TEAM MEMBERS ALSO 3243 01:58:46,880 --> 01:58:48,240 ADD IN IF THEY HAVE ANYTHING 3244 01:58:48,240 --> 01:58:51,560 ELSE TO SAY, BUT WE DO FUND THE 3245 01:58:51,560 --> 01:58:52,200 AMERICAN ACADEMY OF PEDIATRICS 3246 01:58:52,200 --> 01:58:55,920 AND THEY DO HAVE SEVERAL 3247 01:58:55,920 --> 01:58:56,760 TRAININGS. 3248 01:58:56,760 --> 01:58:58,880 WE HAVE ECHOs, WE ALSO HAVE A 3249 01:58:58,880 --> 01:59:03,560 RESIDENT TRAINING PROGRAM, AND 3250 01:59:03,560 --> 01:59:05,920 THERE ARE LOTS OF OTHER KIND OF 3251 01:59:05,920 --> 01:59:07,600 TRAININGS FOR CLINICIANS 3252 01:59:07,600 --> 01:59:10,200 SPECIFIC TO FASD. 3253 01:59:10,200 --> 01:59:14,720 BUT I WASN'T SURE IF MARY KATE 3254 01:59:14,720 --> 01:59:16,000 OR ELIZABETH, IF THERE'S 3255 01:59:16,000 --> 01:59:17,400 ANYTHING ELSE YOU WANTED TO ADD 3256 01:59:17,400 --> 01:59:20,320 RELATED TO THAT OR ANY OTHER 3257 01:59:20,320 --> 01:59:21,040 CLINICIAN-RELATED TRAININGS. 3258 01:59:21,040 --> 01:59:23,400 WE ALSO HAVE THE NATIONAL 3259 01:59:23,400 --> 01:59:24,440 PARTNERSHIP WORK WE'RE DOING 3260 01:59:24,440 --> 01:59:25,880 THAT IS VERY MUCH FOCUSED ON 3261 01:59:25,880 --> 01:59:30,160 TRAININGS FOR CLINICIANS. 3262 01:59:30,160 --> 01:59:31,760 >> THIS IS ELIZABETH DANG. 3263 01:59:31,760 --> 01:59:33,200 WE CONTINUE TO OFFER A COUPLE OF 3264 01:59:33,200 --> 01:59:35,520 TRAININGS ON OUR WEBSITE, IF YOU 3265 01:59:35,520 --> 01:59:39,280 GO TO CDC.GOV/FASD TRAINING, YOU 3266 01:59:39,280 --> 01:59:41,360 CAN FIND THOSE THAT HAVE BEEN 3267 01:59:41,360 --> 01:59:43,760 SPECIFICALLY DEVELOPED FOR 3268 01:59:43,760 --> 01:59:45,280 VARIOUS PROVIDER TYPES. 3269 01:59:45,280 --> 01:59:47,840 SOME OF THOSE CONTINUE TO OFFER 3270 01:59:47,840 --> 01:59:48,320 CONTINUING EDUCATION. 3271 01:59:48,320 --> 01:59:51,560 SO YOU CAN FIND MORE ONLINE 3272 01:59:51,560 --> 01:59:52,000 ABOUT THAT. 3273 01:59:52,000 --> 01:59:54,520 THE TRAININGS ARE FREE, AND THEN 3274 01:59:54,520 --> 01:59:57,040 THERE'S ALSO A DATABASE WITH 3275 01:59:57,040 --> 01:59:58,120 ABOUT 75 DIFFERENT RESOURCES 3276 01:59:58,120 --> 02:00:00,480 WHERE YOU CAN SEARCH BY PROVIDER 3277 02:00:00,480 --> 02:00:03,000 TYPE AND FIND RESOURCES THAT ARE 3278 02:00:03,000 --> 02:00:05,520 RELEVANT. 3279 02:00:05,520 --> 02:00:06,840 >> HELLO. 3280 02:00:06,840 --> 02:00:07,920 THE INDIAN HEALTH SERVICE ALSO 3281 02:00:07,920 --> 02:00:10,280 HAS A SERIES OF WEBINARS ON 3282 02:00:10,280 --> 02:00:12,280 FETAL ALCOHOL SPECTRUM DISORDERS 3283 02:00:12,280 --> 02:00:14,160 TO EDUCATE HEALTHCARE PROVIDERS 3284 02:00:14,160 --> 02:00:17,960 ON THE IMPACT OF FASD, IT ALSO 3285 02:00:17,960 --> 02:00:20,440 HAS SOME WEBINARS ON SCREENING, 3286 02:00:20,440 --> 02:00:22,960 AND ALSO RECOGNITION OF FASD. 3287 02:00:22,960 --> 02:00:24,880 WE ALL KNOW THAT ACCESS TO 3288 02:00:24,880 --> 02:00:27,840 SPECIALIZED TREATMENT SUCH AS 3289 02:00:27,840 --> 02:00:30,240 FASD IS A HUGE CHALLENGE IN 3290 02:00:30,240 --> 02:00:31,440 TRIBAL COMMUNITIES. 3291 02:00:31,440 --> 02:00:32,960 SO IHS IS CONSIDERING DIFFERENT 3292 02:00:32,960 --> 02:00:36,480 WAYS TO ADDRESS THAT CHALLENGE. 3293 02:00:36,480 --> 02:00:40,560 ONE EXAMPLE, WE HAVE A BIWEEKLY 3294 02:00:40,560 --> 02:00:41,120 PEDIATRICIAN CONSULTATION 3295 02:00:41,120 --> 02:00:42,120 CLINIC, WHICH IS FUNDED THROUGH 3296 02:00:42,120 --> 02:00:43,640 THE INDIAN CHILDREN'S PROGRAM 3297 02:00:43,640 --> 02:00:45,880 AND YOU CAN ACCESS THAT, AND 3298 02:00:45,880 --> 02:00:47,960 THIS IS SPECIFICALLY FOR 3299 02:00:47,960 --> 02:00:48,520 PROVIDERS. 3300 02:00:48,520 --> 02:00:52,640 THESE FUNDS ARE TO HELP ADDRESS 3301 02:00:52,640 --> 02:00:53,400 DEVELOPMENTAL DELAYS AND OTHER 3302 02:00:53,400 --> 02:00:55,600 ISSUES IN AMERICAN INDIAN AND 3303 02:00:55,600 --> 02:00:57,240 ALASKA NATIVE CHILDREN. 3304 02:00:57,240 --> 02:00:59,040 ANY PROVIDER WITH AN IHS OR ANY 3305 02:00:59,040 --> 02:01:00,840 OF THE INDIAN HEALTH SYSTEM, 3306 02:01:00,840 --> 02:01:04,960 WHICH INCLUDES TRIBAL AND URBAN 3307 02:01:04,960 --> 02:01:06,040 PROGRAMS, ANY PROVIDER WHO IS 3308 02:01:06,040 --> 02:01:07,920 TREATING A NATIVE YOUTH CAN CALL 3309 02:01:07,920 --> 02:01:11,160 IN TO THIS INDIAN CHILDREN'S 3310 02:01:11,160 --> 02:01:12,320 PROGRAM, WHICH CONSISTS OF A 3311 02:01:12,320 --> 02:01:17,280 PANEL OF EXPERTS AND GET A FREE 3312 02:01:17,280 --> 02:01:17,600 CONSULTATION. 3313 02:01:17,600 --> 02:01:19,440 WITH THIS CLINIC, IHS HOPES TO 3314 02:01:19,440 --> 02:01:20,200 HELP CHILDREN AND FAMILIES WITH 3315 02:01:20,200 --> 02:01:22,040 ISSUES THAT THEY EXPERIENCE, 3316 02:01:22,040 --> 02:01:24,960 INCLUDING FASD, AUTISM AND OTHER 3317 02:01:24,960 --> 02:01:27,200 NEUROLOGICAL DEVELOPMENTAL 3318 02:01:27,200 --> 02:01:27,960 DISORDERS, AND BRIDGE THE GAP 3319 02:01:27,960 --> 02:01:30,040 BETWEEN HEALTHCARE PROVIDERS AND 3320 02:01:30,040 --> 02:01:30,360 HEALTHCARE. 3321 02:01:30,360 --> 02:01:31,840 FOR ADDITIONAL INFORMATION ON 3322 02:01:31,840 --> 02:01:39,920 THAT, THERE IS THE -- GO TO 3323 02:01:39,920 --> 02:01:40,880 IHS.GOV/ICP, INDIAN CHILDREN'S 3324 02:01:40,880 --> 02:01:41,080 PROGRAM. 3325 02:01:41,080 --> 02:01:41,960 THANK YOU. 3326 02:01:41,960 --> 02:01:44,720 >> THANK YOU, J.P. 3327 02:01:44,720 --> 02:01:45,800 MARY KATE? 3328 02:01:45,800 --> 02:01:48,760 >> I JUST WANTED TO ADD, AS SHIN 3329 02:01:48,760 --> 02:01:50,280 SAID, WE'VE BEEN WORKING WITH 3330 02:01:50,280 --> 02:01:54,160 THE AAP FOR A NUMBER OF YEARS TO 3331 02:01:54,160 --> 02:01:55,520 PROVIDE TRAINING AND EDUCATION 3332 02:01:55,520 --> 02:01:57,880 TO PEDIATRIC PROVIDERS, AND IN 3333 02:01:57,880 --> 02:01:59,960 ADDITION TO THE PEDIATRIC ECHO 3334 02:01:59,960 --> 02:02:01,640 THAT WE'VE BEEN SUPPORTING AND 3335 02:02:01,640 --> 02:02:04,800 THE RESIDENT TRAINING PROGRAM, 3336 02:02:04,800 --> 02:02:11,240 WE ALSO HAVE -- AAP HAS 3337 02:02:11,240 --> 02:02:12,840 DEVELOPED A TOOLKIT THAT'S 3338 02:02:12,840 --> 02:02:14,000 ONLINE AND WE CAN DEFINITELY 3339 02:02:14,000 --> 02:02:15,080 DROP A LINK INTO THE CHAT HERE 3340 02:02:15,080 --> 02:02:16,840 FOR THAT, BUT YOU CAN JUST 3341 02:02:16,840 --> 02:02:19,800 GOOGLE AAP FASD AND YOU'LL GET 3342 02:02:19,800 --> 02:02:22,200 TO THE TOOLKIT AND THE VARIOUS 3343 02:02:22,200 --> 02:02:24,920 RESOURCES THAT THEY HAVE. 3344 02:02:24,920 --> 02:02:27,200 THEY ALSO DO AN ANNUAL WEBINAR 3345 02:02:27,200 --> 02:02:29,400 SERIES THAT ACTUALLY IS JUST 3346 02:02:29,400 --> 02:02:31,560 FINISHING UP AS PART OF ALCOHOL 3347 02:02:31,560 --> 02:02:34,840 AWARENESS MONTH THIS PAST MONTH. 3348 02:02:34,840 --> 02:02:36,800 >> THANK YOU VERY MUCH. 3349 02:02:36,800 --> 02:02:44,360 CHAD IS NOT AVAILABLE FORCHAT IR 3350 02:02:44,360 --> 02:02:45,520 VIDEOCAST PARTICIPANTS BUT 3351 02:02:45,520 --> 02:02:48,040 PLEASE GET IN TOUCH WITH ICCFASD 3352 02:02:48,040 --> 02:02:48,280 MEMBERS. 3353 02:02:48,280 --> 02:02:51,760 I CAN HAVE -- I CAN SEE A HAND 3354 02:02:51,760 --> 02:02:52,440 RAISED. 3355 02:02:52,440 --> 02:02:53,080 JON, GO AHEAD. 3356 02:02:53,080 --> 02:02:55,480 >> YES, HELLO. 3357 02:02:55,480 --> 02:02:57,320 SAMHSA DEVELOPED THROUGH THE 3358 02:02:57,320 --> 02:03:01,480 FASD CENTER FOR EXCELLENCE IN 3359 02:03:01,480 --> 02:03:02,920 DECEMBER 2013 ADDRESSING FETAL 3360 02:03:02,920 --> 02:03:05,040 ALCOHOL SPECTRUM DISORDERS, AND 3361 02:03:05,040 --> 02:03:11,080 THE AUDIENCE FOR THAT PARTICULAR 3362 02:03:11,080 --> 02:03:13,160 PUBLICATION ARE PREVENTION 3363 02:03:13,160 --> 02:03:14,160 PROFESSIONALS, PROGRAM 3364 02:03:14,160 --> 02:03:15,280 PROVIDERS, ADMINISTRATORS AND 3365 02:03:15,280 --> 02:03:16,040 PROJECT MANAGERS. 3366 02:03:16,040 --> 02:03:19,800 IT IS DOWNLOADABLE FROM THE 3367 02:03:19,800 --> 02:03:21,840 SAMHSA.GOV WEBSITE IN THE SAMHSA 3368 02:03:21,840 --> 02:03:22,040 STORE. 3369 02:03:22,040 --> 02:03:23,640 THE PROBLEM IS, IT WOULD NEED 3370 02:03:23,640 --> 02:03:26,360 PROBABLY A MASTER TRAINER ON TO 3371 02:03:26,360 --> 02:03:27,880 TRAIN PEOPLE, BUT SOMEBODY DID 3372 02:03:27,880 --> 02:03:31,120 MENTION AT THE BEGINNING OF THIS 3373 02:03:31,120 --> 02:03:32,720 MEETING TODAY ABOUT TIP 58, AND 3374 02:03:32,720 --> 02:03:34,840 SO I'M BRINGING IT UP AGAIN, 3375 02:03:34,840 --> 02:03:36,440 THAT IT IS THERE. 3376 02:03:36,440 --> 02:03:39,480 AND THIS GUIDE REVIEWS SCREENING 3377 02:03:39,480 --> 02:03:42,360 TOOLS TO ALCOHOL USE -- 3378 02:03:42,360 --> 02:03:44,080 PRIMARILY WOMEN OF CHILD BEARING 3379 02:03:44,080 --> 02:03:46,680 AGE TO PREVENT FETAL ALCOHOL 3380 02:03:46,680 --> 02:03:49,520 SPECTRUM DISORDER, ALSO METHODS 3381 02:03:49,520 --> 02:03:50,200 FOR IDENTIFYING PEOPLE LIVING 3382 02:03:50,200 --> 02:03:51,400 WITH FASD AND MODIFYING 3383 02:03:51,400 --> 02:03:52,440 TREATMENT ACCORDINGLY. 3384 02:03:52,440 --> 02:03:55,120 THANK YOU. 3385 02:03:55,120 --> 02:03:57,280 >> THANK YOU. 3386 02:03:57,280 --> 02:03:58,360 ALL RIGHT. 3387 02:03:58,360 --> 02:04:00,120 WE HAVE TIME FOR QUESTIONS OR 3388 02:04:00,120 --> 02:04:04,000 COMMENTS. 3389 02:04:04,000 --> 02:04:04,920 ANYONE WANTS TO RAISE A QUESTION 3390 02:04:04,920 --> 02:04:07,560 OR COMMENT? 3391 02:04:07,560 --> 02:04:09,520 >> TATIANA, WE DID RECEIVE 3392 02:04:09,520 --> 02:04:12,080 ANOTHER QUESTION IN THE VIDEO 3393 02:04:12,080 --> 02:04:12,280 CHAT. 3394 02:04:12,280 --> 02:04:12,640 >> OKAY. 3395 02:04:12,640 --> 02:04:13,880 GO AHEAD, PLEASE. 3396 02:04:13,880 --> 02:04:16,920 >> AND THIS WOULD BE A QUESTION 3397 02:04:16,920 --> 02:04:19,400 TO JON OF SAMHSA. 3398 02:04:19,400 --> 02:04:24,760 THE QUESTION IS FROM DAN 3399 02:04:24,760 --> 02:04:26,520 DUBOFSKY, IS SAMHSA FUNDING 3400 02:04:26,520 --> 02:04:27,800 ANYTHING SPECIFICALLY ON 3401 02:04:27,800 --> 02:04:29,760 IDENTIFYING TREATING THOSE WITH 3402 02:04:29,760 --> 02:04:31,960 AN FASD? 3403 02:04:31,960 --> 02:04:33,920 >> CURRENTLY, SAMHSA IS NOT 3404 02:04:33,920 --> 02:04:35,960 FUNDING ANY INITIATIVE 3405 02:04:35,960 --> 02:04:44,960 SPECIFICALLY PERTAINING TO FASD. 3406 02:04:44,960 --> 02:04:47,880 >> OKAY, THANK YOU. 3407 02:04:47,880 --> 02:04:50,520 THANK YOU FOR THIS QUESTION. 3408 02:04:50,520 --> 02:04:55,440 ANY QUESTIONS? 3409 02:04:55,440 --> 02:04:59,800 I DO HAVE A QUESTION TO KRISTINA 3410 02:04:59,800 --> 02:05:03,280 TO ASK, YOU HAVE PUBLISHED 3411 02:05:03,280 --> 02:05:06,760 WONDERFUL MATERIALS BASED ON 3412 02:05:06,760 --> 02:05:10,120 YOUR PUBLIC POLICIES RESEARCH ON 3413 02:05:10,120 --> 02:05:11,800 FASD. 3414 02:05:11,800 --> 02:05:12,800 PUBLISHED ABOUT A YEAR AGO. 3415 02:05:12,800 --> 02:05:16,920 AND I JUST WONDER, HAVE YOU 3416 02:05:16,920 --> 02:05:20,280 HEARD FROM PRACTITIONERS FROM 3417 02:05:20,280 --> 02:05:21,520 STATES HOW THESE PUBLICATIONS 3418 02:05:21,520 --> 02:05:23,000 HAVE BEEN RECEIVED, AND WHAT DO 3419 02:05:23,000 --> 02:05:24,640 YOU EXPECT IS GOING TO HAPPEN 3420 02:05:24,640 --> 02:05:28,360 WITH YOUR PUBLICATIONS WHEN YOU 3421 02:05:28,360 --> 02:05:29,760 DESCRIBE THE CURRENT SITUATION 3422 02:05:29,760 --> 02:05:32,200 AND WHAT COULD BE DONE TO 3423 02:05:32,200 --> 02:05:35,680 IMPROVE SERVICES? 3424 02:05:35,680 --> 02:05:37,200 >> THANK YOU, TATIANA. 3425 02:05:37,200 --> 02:05:39,920 I THINK YOU'RE REFERRING TO THE 3426 02:05:39,920 --> 02:05:42,120 BRIEF THAT WE PUBLISHED A YEAR 3427 02:05:42,120 --> 02:05:43,280 AND A HALF AGO? 3428 02:05:43,280 --> 02:05:43,920 >> YES. 3429 02:05:43,920 --> 02:05:47,560 >> SO THOSE WERE BRIEFS WHERE WE 3430 02:05:47,560 --> 02:05:51,040 LOOKED AT STATE INITIATIVES AND 3431 02:05:51,040 --> 02:05:53,400 WHAT CAN STATES DO TO IMPROVE 3432 02:05:53,400 --> 02:05:57,120 ACCESS TO PREVENTION AND 3433 02:05:57,120 --> 02:05:59,440 TREATMENT. 3434 02:05:59,440 --> 02:06:01,280 SO FETAL ALCOHOL SYNDROME, WE 3435 02:06:01,280 --> 02:06:07,840 DISCUSS UNIVERSAL SCREENING AND 3436 02:06:07,840 --> 02:06:08,320 FINANCING. 3437 02:06:08,320 --> 02:06:09,360 WE PUBLISHED THIS ON OUR 3438 02:06:09,360 --> 02:06:09,920 WEBSITE. 3439 02:06:09,920 --> 02:06:14,440 I HAVE NOT HEARD DIRECT FEEDBACK 3440 02:06:14,440 --> 02:06:16,360 FROM THE COMMUNITY, FROM 3441 02:06:16,360 --> 02:06:21,040 INDIVIDUAL STATES. 3442 02:06:21,040 --> 02:06:24,560 AND I'M NOT SURE WHY, BUT I 3443 02:06:24,560 --> 02:06:27,720 THINK A LOT OF STATES' POLICIES 3444 02:06:27,720 --> 02:06:31,320 HAVE ALSO BEEN VERY MUCH FOCUSED 3445 02:06:31,320 --> 02:06:33,400 ON ADDRESSING COVID AT THE TIME 3446 02:06:33,400 --> 02:06:38,280 WHEN THESE BRIEFS WERE 3447 02:06:38,280 --> 02:06:42,000 PUBLISHED, AND I THINK PEOPLE 3448 02:06:42,000 --> 02:06:43,080 WERE STILL MORE IN THE EMERGENCY 3449 02:06:43,080 --> 02:06:43,480 MODE. 3450 02:06:43,480 --> 02:06:45,280 I FEEL LIKE JUST IN THE LAST ONE 3451 02:06:45,280 --> 02:06:46,640 YEAR, THINGS HAVE STARTED TO 3452 02:06:46,640 --> 02:06:47,400 CALM DOWN MORE. 3453 02:06:47,400 --> 02:06:52,200 FOR EXAMPLE, WE'RE STARTING TO 3454 02:06:52,200 --> 02:06:53,360 TALK -- FOR THOSE OF YOU 3455 02:06:53,360 --> 02:06:54,720 FOLLOWING THE EDUCATIONAL 3456 02:06:54,720 --> 02:06:59,760 RESOURCES, THERE IS GOING TO BE 3457 02:06:59,760 --> 02:07:03,560 A NEW TECHNICAL ASSISTANCE 3458 02:07:03,560 --> 02:07:06,040 CENTER THAT DEPARTMENT OF ED AND 3459 02:07:06,040 --> 02:07:07,160 CENTERS FOR MEDICARE AND 3460 02:07:07,160 --> 02:07:09,360 MEDICAID ARE SETTING UP RIGHT 3461 02:07:09,360 --> 02:07:11,520 NOW THAT'S GOING TO FOCUS ON 3462 02:07:11,520 --> 02:07:14,120 SCHOOL MENTAL HEALTH, AND THAT 3463 02:07:14,120 --> 02:07:15,760 CAN BE A PLACE WHERE SOME OF 3464 02:07:15,760 --> 02:07:19,920 THESE RESOURCES ARE DISTRIBUTED. 3465 02:07:19,920 --> 02:07:22,280 SO THAT'S ONE VENUE. 3466 02:07:22,280 --> 02:07:25,120 BUT I THINK THAT I'M HOPING TO 3467 02:07:25,120 --> 02:07:31,360 SEE MORE INTEREST NOW THAT THE 3468 02:07:31,360 --> 02:07:34,160 ATTENTION IS MORE ON PROVIDING 3469 02:07:34,160 --> 02:07:38,360 THESE SERVICES. 3470 02:07:38,360 --> 02:07:38,680 >> THANK YOU. 3471 02:07:38,680 --> 02:07:40,720 THANK YOU, KRISTINA. 3472 02:07:40,720 --> 02:07:43,440 THOSE BRIEFS HAVE BEEN EXCELLENT 3473 02:07:43,440 --> 02:07:45,440 AND YOU HAD GREAT MEETINGS WITH 3474 02:07:45,440 --> 02:07:46,160 EXPERTS. 3475 02:07:46,160 --> 02:07:47,680 I HOPE IT WILL GET MORE 3476 02:07:47,680 --> 02:07:48,120 ATTENTION. 3477 02:07:48,120 --> 02:07:50,960 I SEE ONE HAND BUT I JUST WANTED 3478 02:07:50,960 --> 02:07:55,320 TO REMIND EVERYONE THAT IT'S 3479 02:07:55,320 --> 02:07:57,160 TIME FOR LUNCH BREAK, AND 3480 02:07:57,160 --> 02:07:59,720 SHARON, I CAN GIVE YOU A 3481 02:07:59,720 --> 02:08:00,920 FEW SECONDS TO ANSWER YOUR 3482 02:08:00,920 --> 02:08:02,680 QUESTION OR MAKE YOUR COMMENTS. 3483 02:08:02,680 --> 02:08:04,960 >> OKAY. 3484 02:08:04,960 --> 02:08:07,880 WELL, I JUST WANTED TO POINT OUT 3485 02:08:07,880 --> 02:08:10,000 THAT IN THE CHILD WELFARE FIELD, 3486 02:08:10,000 --> 02:08:12,120 IT'S A LITTLE BIT DIFFERENT THAN 3487 02:08:12,120 --> 02:08:15,640 IT IS IN JUST THE GENERAL 3488 02:08:15,640 --> 02:08:17,480 MEDICAL FIELD. 3489 02:08:17,480 --> 02:08:20,880 IT'S TRUE THAT, YOU KNOW, WE DO 3490 02:08:20,880 --> 02:08:22,080 HAVE A LOT OF KNOWLEDGE ABOUT 3491 02:08:22,080 --> 02:08:25,080 THINGS THAT ARE GOING ON IN THE 3492 02:08:25,080 --> 02:08:26,080 AMERICAN ACADEMY OF PEDIATRICS 3493 02:08:26,080 --> 02:08:30,000 AND THE TIP SHEET AND ALL OF THAT 3494 02:08:30,000 --> 02:08:31,760 STUFF, BUT THERE ARE SPECIAL 3495 02:08:31,760 --> 02:08:33,240 PROBLEMS THAT WE HAVE IN THE 3496 02:08:33,240 --> 02:08:33,960 CHILD WELFARE FIELD. 3497 02:08:33,960 --> 02:08:36,880 ONE OF THEM IS THAT IN 13 3498 02:08:36,880 --> 02:08:38,400 STATES, IT'S CONSIDERED REASON 3499 02:08:38,400 --> 02:08:40,800 ENOUGH TO REMOVE A CHILD FROM 3500 02:08:40,800 --> 02:08:43,560 THE HOME AND PLACE THEM IN 3501 02:08:43,560 --> 02:08:45,800 FOSTER CARE, IF THEY'RE FOUND TO 3502 02:08:45,800 --> 02:08:47,800 HAVE BEEN PRENATALLY EXPOSED TO 3503 02:08:47,800 --> 02:08:48,760 A SUBSTANCE. 3504 02:08:48,760 --> 02:08:52,240 SO EVEN ASKING THE QUESTION CAN 3505 02:08:52,240 --> 02:08:56,920 BE A VERY FEAR-INSTILLING 3506 02:08:56,920 --> 02:09:00,000 PROBLEM, SO THE SOCIAL WORKERS 3507 02:09:00,000 --> 02:09:02,840 NEED SPECIAL KINDS OF TRAINING 3508 02:09:02,840 --> 02:09:04,160 AND EDUCATION IN HOW TO HANDLE 3509 02:09:04,160 --> 02:09:06,880 THIS PROBLEM. 3510 02:09:06,880 --> 02:09:08,200 SO I JUST WANTED TO POINT THAT 3511 02:09:08,200 --> 02:09:10,400 OUT AND THAT ACTUALLY GOES WAY 3512 02:09:10,400 --> 02:09:11,160 BACK TO THE QUESTION THAT WAS 3513 02:09:11,160 --> 02:09:13,320 ASKED BY ONE OF THE OTHER PEOPLE 3514 02:09:13,320 --> 02:09:14,840 EARLIER TODAY, EARLIER THIS 3515 02:09:14,840 --> 02:09:17,640 MORNING. 3516 02:09:17,640 --> 02:09:18,240 ABOUT DID WE KNOW ABOUT 3517 02:09:18,240 --> 02:09:18,880 THESE THINGS. 3518 02:09:18,880 --> 02:09:20,400 WELL, YES, WE DO KNOW ABOUT 3519 02:09:20,400 --> 02:09:22,560 THEM, BUT WE HAVE TO DO THINGS A 3520 02:09:22,560 --> 02:09:23,520 LITTLE BIT DIFFERENTLY IN THE 3521 02:09:23,520 --> 02:09:24,360 CHILD WELFARE FIELD BECAUSE OF 3522 02:09:24,360 --> 02:09:26,040 THE THINGS THAT WE KNOW ABOUT 3523 02:09:26,040 --> 02:09:28,640 THE SPECIAL PROBLEMS WITHIN 3524 02:09:28,640 --> 02:09:30,160 CHILD WELFARE. 3525 02:09:30,160 --> 02:09:31,080 >> THANK YOU, SHARON. 3526 02:09:31,080 --> 02:09:31,960 THANK YOU VERY MUCH. 3527 02:09:31,960 --> 02:09:32,960 VERY IMPORTANT COMMENT. 3528 02:09:32,960 --> 02:09:34,040 THANK YOU FOR A GREAT 3529 02:09:34,040 --> 02:09:34,360 DISCUSSION. 3530 02:09:34,360 --> 02:09:39,160 IT IS TIME TO BREAK FOR LUNCH. 3531 02:09:39,160 --> 02:09:40,520 PLEASE DURING LUNCH, TURN OFF 3532 02:09:40,520 --> 02:09:42,360 YOUR CAMERA, TURN OFF YOUR MIC. 3533 02:09:42,360 --> 02:09:45,720 WE WILL BE BACK AT 12:40, AND IT 3534 02:09:45,720 --> 02:09:46,680 WILL BE LIVE SESSION. 3535 02:09:46,680 --> 02:09:49,120 PLEASE BE ON TIME, COME A COUPLE 3536 02:09:49,120 --> 02:09:52,160 MINUTES BEFORE, AND WE WILL HEAR 3537 02:09:52,160 --> 02:09:57,720 FROM OUR PANEL OF LIVED 3538 02:09:57,720 --> 02:09:58,240 EXPERIENCES. 3539 02:09:58,240 --> 02:10:00,560 WE LOOK FORWARD TO HAVE YOU BACK 3540 02:10:00,560 --> 02:10:02,280 AT 12:40. 3541 02:10:02,280 --> 02:10:02,600 LUNCH BREAK. 3542 02:10:02,600 --> 02:10:07,760 THANK YOU. 3543 02:10:07,760 --> 02:10:15,080 >> WELCOME TO 3544 02:10:15,080 --> 02:10:17,640 THE SECOND PART OF THE MEETING. 3545 02:10:17,640 --> 02:10:20,680 I SEE PEOPLE ENTERING THE THE 3546 02:10:20,680 --> 02:10:26,040 ROOM. THANK YOU. WE CONTINUE OUR 3547 02:10:26,040 --> 02:10:27,360 MEETING NOW WITH SPECIAL PANEL 3548 02:10:27,360 --> 02:10:28,120 WHICH IS FOCUSED ON WHAT IS 3549 02:10:28,120 --> 02:10:29,160 WORKING IN OUR COMMUNITY, LESSON 3550 02:10:29,160 --> 02:10:30,240 LEARNED FROM LIVED EXPERIENCES. 3551 02:10:30,240 --> 02:10:32,520 WE KNOW THAT THERE'S SOME 3552 02:10:32,520 --> 02:10:34,200 SERVICES AND WE ARE HERE TODAY 3553 02:10:34,200 --> 02:10:36,560 ABOUT PROGRAMS AND SERVICES THAT 3554 02:10:36,560 --> 02:10:40,920 HAVE BEEN DEVELOPED BY DIFFERENT 3555 02:10:40,920 --> 02:10:43,960 AGENCIES AND WE REALLY WANT TO 3556 02:10:43,960 --> 02:10:47,680 HEAR FROM PEOPLE WITH LIVED 3557 02:10:47,680 --> 02:10:49,160 EXPERIENCES BECAUSE WE ARE AWARE 3558 02:10:49,160 --> 02:10:51,680 THAT SOME PROGRAMS WORK, SOME 3559 02:10:51,680 --> 02:10:53,800 PROGRAMS DON'T, WE STILL NEED 3560 02:10:53,800 --> 02:10:55,480 MORE SERVICES. WHAT WE WOULD 3561 02:10:55,480 --> 02:10:57,040 LIKE TO SEE, WE WOULD LIKE TO 3562 02:10:57,040 --> 02:10:59,760 LOOK AT WHAT IS WORKING, WHAT 3563 02:10:59,760 --> 02:11:03,000 HAS BEEN HELPING, WHAT HAS BEEN 3564 02:11:03,000 --> 02:11:04,440 MAKING DIFFERENCE. WE ARE 3565 02:11:04,440 --> 02:11:07,280 DELIGHTED TO BE JOINED BY OUR 3566 02:11:07,280 --> 02:11:11,800 INVITED GUEST SPEAKERSS. IT IS 3567 02:11:11,800 --> 02:11:17,080 PLEASURE TO INTRODUCE THE PANEL 3568 02:11:17,080 --> 02:11:20,120 MODERATOR, JAN LUTKE, WHO WILL 3569 02:11:20,120 --> 02:11:21,280 INTRODUCE THE PANEL SPEAKERS 3570 02:11:21,280 --> 02:11:23,480 WHEN WE COME TO THIS PART OF THE 3571 02:11:23,480 --> 02:11:25,720 PANEL DISCUSSION. VERY BRIEFLY I 3572 02:11:25,720 --> 02:11:30,440 WILL TELL ABOUT JAN. WE HAVE ALL 3573 02:11:30,440 --> 02:11:32,080 (INAUDIBLE) AVAILABLE ON LINE, 3574 02:11:32,080 --> 02:11:35,920 PLEASE LOOK AT OUR WEBSITE FOR 3575 02:11:35,920 --> 02:11:37,840 DETAILS. BUT I JUST NEED TO TELL 3576 02:11:37,840 --> 02:11:40,160 THIS ABOUT JAN BECAUSE SHE IS 3577 02:11:40,160 --> 02:11:42,360 INTERNATIONAL EXPERT WELL KNOWN 3578 02:11:42,360 --> 02:11:44,000 FOR HE WORK WITH INDIVIDUALS 3579 02:11:44,000 --> 02:11:48,320 WITH FASD AND FAMILIES. ONE FACT 3580 02:11:48,320 --> 02:11:50,240 I DEFINITELY WANT TO TELL IN 3581 02:11:50,240 --> 02:11:53,080 ADDITION TO MANY POSITIONS THAT 3582 02:11:53,080 --> 02:11:56,480 JAN HAS HAD AND COMMITTEES AND 3583 02:11:56,480 --> 02:11:59,720 PAPERS SHE WROTE, BUT I WANT TO 3584 02:11:59,720 --> 02:12:02,040 TELL THAT JAN HAS BEEN ADOPTED 3585 02:12:02,040 --> 02:12:04,560 22 CHILDREN FROM FOSTER CARE 3586 02:12:04,560 --> 02:12:07,400 INCLUDING 16 CHILDREN WITH FASD. 3587 02:12:07,400 --> 02:12:12,200 16 CHILDREN WITH FASD. AND NOW 3588 02:12:12,200 --> 02:12:15,400 THE AGE IS 32050. IN ADDITION 3589 02:12:15,400 --> 02:12:18,560 JAN HAS HELPED MANY OTHER 3590 02:12:18,560 --> 02:12:20,960 INDIVIDUALS WITH FASD. AND MANY 3591 02:12:20,960 --> 02:12:22,040 PROFESSIONALS WHO HAVE BEEN 3592 02:12:22,040 --> 02:12:24,400 WORKING IN THE FIELD AND HELP US 3593 02:12:24,400 --> 02:12:26,680 TO KNOW AND TO UNDERSTAND 3594 02:12:26,680 --> 02:12:28,360 BETTER. SO JAN WILL INTRODUCE 3595 02:12:28,360 --> 02:12:31,240 ALL THE SPEAKERS. I WILL BRIEFLY 3596 02:12:31,240 --> 02:12:33,880 INTRODUCE DR. CHRISTIE PETRENKO 3597 02:12:33,880 --> 02:12:35,440 BECAUSE SHE WILL BEGIN THIS 3598 02:12:35,440 --> 02:12:38,400 SESSION. SHE IS CLINICAL 3599 02:12:38,400 --> 02:12:39,760 PSYCHOLOGIST AND SCIENTIST AT 3600 02:12:39,760 --> 02:12:40,800 UNIVERSITY OF ROCHESTER IN NEW 3601 02:12:40,800 --> 02:12:43,960 YORK. SHE WILL SPEAK ABOUT HER 3602 02:12:43,960 --> 02:12:44,960 RESEARCH THAT ENGAGES 3603 02:12:44,960 --> 02:12:47,400 COMMUNITIES. THE USE OF THIS 3604 02:12:47,400 --> 02:12:50,520 TYPE OF RESEARCH WHEN WE ASK 3605 02:12:50,520 --> 02:12:53,040 COMMUNITIES, WHEN WE ASK PEOPLE 3606 02:12:53,040 --> 02:12:55,640 HAS BEEN REALLY INCREASING MORE 3607 02:12:55,640 --> 02:12:59,720 RECENTLY. AND DR. PETRENKO WILL 3608 02:12:59,720 --> 02:13:02,040 SPEAK ABOUT EVIDENCE FROM PUGH 3609 02:13:02,040 --> 02:13:05,560 STUDIES WHAT SHE LEARNED FROM 3610 02:13:05,560 --> 02:13:08,120 INDIVIDUALS WITH FASD. WITH 3611 02:13:08,120 --> 02:13:10,240 THAT, WELCOME DR. PETRENKO AND 3612 02:13:10,240 --> 02:13:11,120 WELCOME YOUR PRESENTATION. 3613 02:13:11,120 --> 02:13:14,640 >> THANK YOU, TATIANA FOR SUCH A 3614 02:13:14,640 --> 02:13:16,080 NICE INTRODUCTION. I'M GOING TO 3615 02:13:16,080 --> 02:13:18,320 SHARE MY SCREEN HERE AND GET THE 3616 02:13:18,320 --> 02:13:22,840 PRESENTATION STARTED. I WANT TO 3617 02:13:22,840 --> 02:13:24,280 THANK THE ICCFASD FOR INVITING 3618 02:13:24,280 --> 02:13:26,760 ME TO SPEAK TODAY AND I'M 3619 02:13:26,760 --> 02:13:28,280 LOOKING FORWARD TO THE PANEL 3620 02:13:28,280 --> 02:13:30,600 DISCUSSION ESPECIALLY AT THE 3621 02:13:30,600 --> 02:13:34,160 CONCLUSION OF MY PORTION AND I 3622 02:13:34,160 --> 02:13:36,520 JUST THINK IT IS GOING TO BE A 3623 02:13:36,520 --> 02:13:38,880 REALLY HELPFUL TOPIC FOR US ALL 3624 02:13:38,880 --> 02:13:40,320 TO HAVE TIME TO SPEAK ABOUT 3625 02:13:40,320 --> 02:13:44,320 TODAY. I AM GOING TO DO A BRIEF 3626 02:13:44,320 --> 02:13:46,120 INTERACTIVE ACTIVITY IN JUST A 3627 02:13:46,120 --> 02:13:48,240 BRIEF MINUTE. IF YOU HAVE YOUR 3628 02:13:48,240 --> 02:13:50,760 SMART PHONE CLOSE BY OR BROWSER 3629 02:13:50,760 --> 02:13:56,800 WINDOW AND WANT TO GO TO 3630 02:13:56,800 --> 02:13:58,000 MENTI.COM I WILL TELL YOU WHAT 3631 02:13:58,000 --> 02:14:00,360 TO DO NEXT IN TWO SLIDES. SO MY 3632 02:14:00,360 --> 02:14:02,720 GOAL FOR OUR TIME TOGETHER IS TO 3633 02:14:02,720 --> 02:14:04,480 BEGIN BY DEFINING AND GIVING 3634 02:14:04,480 --> 02:14:06,360 EXAMPLES OF WHAT WE MEAN WHEN WE 3635 02:14:06,360 --> 02:14:09,600 SAY COMMUNITY ENGAGED RESEARCH. 3636 02:14:09,600 --> 02:14:12,120 I ALSO AM GOING TO HIGHLIGHT 3637 02:14:12,120 --> 02:14:14,880 WHAT WORKS FROM FASD RESEARCH 3638 02:14:14,880 --> 02:14:16,440 AND THEN OFFER A FEW NEXT STEPS 3639 02:14:16,440 --> 02:14:18,080 AND FUTURE DIRECTIONS FOR 3640 02:14:18,080 --> 02:14:19,200 EVERYONE TO CONSIDER AND THEN WE 3641 02:14:19,200 --> 02:14:20,440 WILL MOVE ON TO OUR PANEL 3642 02:14:20,440 --> 02:14:25,600 DISCUSSION. SO HERE IS OUR 3643 02:14:25,600 --> 02:14:27,600 INTERACTIVE PART. INCLUDING 3644 02:14:27,600 --> 02:14:30,400 ANYONE WHO IS ON THE ZOOM AS 3645 02:14:30,400 --> 02:14:33,440 WELL AS THE WEBCAST, PLEASE GO 3646 02:14:33,440 --> 02:14:38,000 TO MENTI.COM AND YOU WILL SEE 3647 02:14:38,000 --> 02:14:39,560 THIS CODE HERE UP AT THE TOP OF 3648 02:14:39,560 --> 02:14:44,880 THE SCREEN. THESE NUMBERS 3649 02:14:44,880 --> 02:14:49,160 42704105. IF YOU ENTER THEN AT 3650 02:14:49,160 --> 02:14:51,040 THAT MENTI.COM WEBSITE YOU WILL 3651 02:14:51,040 --> 02:14:54,360 BE ASKED A QUESTION OF WHO IS IN 3652 02:14:54,360 --> 02:14:56,160 FASD COMMUNITY. AND TOGETHER WE 3653 02:14:56,160 --> 02:14:59,880 WILL BUILD A WORD CLOUD OF WHO 3654 02:14:59,880 --> 02:15:03,280 WE ALL CONSIDER AS PART OF THE 3655 02:15:03,280 --> 02:15:05,400 COMMUNITY. I'D LOVE TO DO THIS 3656 02:15:05,400 --> 02:15:10,120 TO GET US STARTED TODA TODA TODO 3657 02:15:10,120 --> 02:15:11,960 AHEAD AND ENTER THAT. YOU CAN 3658 02:15:11,960 --> 02:15:16,800 ENTER UP AS MANY AS FIVE ITEMS, 3659 02:15:16,800 --> 02:15:23,280 AS MANY TIMES AS YOU WANT. MAG 3660 02:15:23,280 --> 02:15:30,280 WEALREADY HAVE A FEW PEOPLE WITH 3661 02:15:30,280 --> 02:15:40,600 ITEMS COMING IN. 3662 02:16:13,840 --> 02:16:16,680 THE CLOUD IS GROWING, WE HAVE 3663 02:16:16,680 --> 02:16:18,560 PARENTS, FRIENDS, PEOPLE WITH 3664 02:16:18,560 --> 02:16:20,440 FASD. ADVOCATES, RESEARCHERS, 3665 02:16:20,440 --> 02:16:27,760 PROFESSIONALS. SCHOOLS. 3666 02:16:27,760 --> 02:16:33,800 SELF-ADVOCATES, CAREGIVERS. 3667 02:16:33,800 --> 02:16:36,600 ADOPTED FAMILIES BIOLOGICAL 3668 02:16:36,600 --> 02:16:45,360 FAMILIES, LEGISLATORS. 3669 02:16:45,360 --> 02:16:52,160 HEALTHCARE PROVIDERS. AND MANY 3670 02:16:52,160 --> 02:16:57,800 OTHERS. FEEL FREE TO KEEP ADDING 3671 02:16:57,800 --> 02:16:59,560 YOUR IDEAS AND I WILL COME BACK 3672 02:16:59,560 --> 02:17:01,360 AS WE FINISH OUR PRESENTATION, I 3673 02:17:01,360 --> 02:17:03,400 WILL COME BACK TO THE SLIDE AND 3674 02:17:03,400 --> 02:17:06,240 SEE WHERE WE ENDED UP. WE 3675 02:17:06,240 --> 02:17:08,160 ALREADY HAVE 31 PEOPLE WHO HAVE 3676 02:17:08,160 --> 02:17:13,080 RESPONDED. I WILL COME BACK AT 3677 02:17:13,080 --> 02:17:15,320 THE END. AS WE DEFINE COMMUNITY 3678 02:17:15,320 --> 02:17:16,760 ENGAGED RESEARCH I WANT TO SET 3679 02:17:16,760 --> 02:17:20,840 OUR FRAME WHO CAN DO RESEARCH. 3680 02:17:20,840 --> 02:17:22,400 AS I HAVE HERE OPT DEFINITION, A 3681 02:17:22,400 --> 02:17:24,440 RESEARCHER IS SOMEONE WHO HAS A 3682 02:17:24,440 --> 02:17:26,080 QUESTION AND WORKS TO 3683 02:17:26,080 --> 02:17:28,880 SYSTEMATICALLY TO ANSWER IT. 3684 02:17:28,880 --> 02:17:31,880 THIS DOESN'T NECESSARILY NEED TO 3685 02:17:31,880 --> 02:17:34,200 BE SOMEBODY WHO HAS A MASTERS OR 3686 02:17:34,200 --> 02:17:37,600 Ph.D. REALLY IT CAN BE ANYONE. 3687 02:17:37,600 --> 02:17:39,320 I ALSO WANT TO HIGHLIGHT PEOPLE 3688 02:17:39,320 --> 02:17:41,160 WITH LIVED AND LIVING 3689 02:17:41,160 --> 02:17:42,600 EXPERIENCES. THIS IS A PERSONAL 3690 02:17:42,600 --> 02:17:45,520 -- SOMEONE WHO HAS PERSONAL 3691 02:17:45,520 --> 02:17:46,960 KNOWLEDGE OF AN ISSUE DWAYNEED 3692 02:17:46,960 --> 02:17:48,200 THROUGH DIRECT EXPERIENCES. 3693 02:17:48,200 --> 02:17:49,720 THESE -- GAINED THROUGH DIRECT 3694 02:17:49,720 --> 02:17:50,960 EXPERIENCES. THE CATEGORIES 3695 02:17:50,960 --> 02:17:52,560 DON'T NEED TO BE MUTUALLY 3696 02:17:52,560 --> 02:17:56,480 EXCLUSIVE. ENGAGING PEOPLE WITH 3697 02:17:56,480 --> 02:17:59,360 FASD AND THE BROADER FASD 3698 02:17:59,360 --> 02:18:00,720 COMMUNITY HAS MANY ADVANTAGES TO 3699 02:18:00,720 --> 02:18:03,480 RESEARCH. SO ON THE NEXT SLIDE I 3700 02:18:03,480 --> 02:18:04,560 WILL SHARE A VARIETY OF WAYS WE 3701 02:18:04,560 --> 02:18:06,520 CAN DO THIS BUT THERE ARE MANY 3702 02:18:06,520 --> 02:18:08,400 WAYS TO BE CREATIVE AND ENGAGING 3703 02:18:08,400 --> 02:18:13,560 OUR COMMUNITY TO PUT THE BEST 3704 02:18:13,560 --> 02:18:15,200 RESEARCH FORWARD. HERE IS 3705 02:18:15,200 --> 02:18:17,240 EXAMPLES OF COMMUNITY ENGAGED 3706 02:18:17,240 --> 02:18:18,560 RESEARCH. THE FIRST IS CALLED 3707 02:18:18,560 --> 02:18:20,640 COMMUNITY BASED PARTICIPATORY 3708 02:18:20,640 --> 02:18:22,320 RESEARCH OR CBPR AND THIS IS 3709 02:18:22,320 --> 02:18:24,200 WHERE PEOPLE WITH FASD OR OTHER 3710 02:18:24,200 --> 02:18:25,560 COMMUNITY MEMBERS ARE ACTIVELY 3711 02:18:25,560 --> 02:18:27,640 INVOLVED IN THE RESEARCH PROJECT 3712 02:18:27,640 --> 02:18:30,280 ALL MAJOR STAGES. WE ALSO COULD 3713 02:18:30,280 --> 02:18:34,840 USE COMMUNITY ADVISORY BOARDS. 3714 02:18:34,840 --> 02:18:36,960 CABS. THESE ARE PEOPLE WITH FASD 3715 02:18:36,960 --> 02:18:38,520 AND OTHER IMMUNITY MEMBERS SERVE 3716 02:18:38,520 --> 02:18:40,000 ON ADVISORY BOARDS AND PROVIDE 3717 02:18:40,000 --> 02:18:42,320 INPUT ON A PROJECT. IN BOTH OF 3718 02:18:42,320 --> 02:18:44,080 THESE TYPES PEOPLE WITH FASD OR 3719 02:18:44,080 --> 02:18:46,480 COMMUNITY MEMBERS ARE ACTIVE 3720 02:18:46,480 --> 02:18:48,600 PARTICIPANTS. ONE OF MY CANADIAN 3721 02:18:48,600 --> 02:18:49,960 COLLEAGUES JACKIE PIE EQUATES 3722 02:18:49,960 --> 02:18:51,840 HAVING PEOPLE ON OUR TEAM WHO 3723 02:18:51,840 --> 02:18:54,040 HAVE LIVED OR LIVING EXPERIENCE 3724 02:18:54,040 --> 02:18:56,280 SIMILAR TO HAVING A STATISTICIAN 3725 02:18:56,280 --> 02:18:58,960 THAT WE ARE REALLY PART OF 3726 02:18:58,960 --> 02:19:00,560 RESEARCH THAT EVERYBODY HAS 3727 02:19:00,560 --> 02:19:02,080 THEIR OWN ROLE ON OUR RESEARCH 3728 02:19:02,080 --> 02:19:04,520 TEAMS AN PEOPLE WITH LIVED OR 3729 02:19:04,520 --> 02:19:07,040 LIVING EXPERIENCE OFFER REALLY 3730 02:19:07,040 --> 02:19:08,160 IMPORTANT INPUT JUST LIKE ANYONE 3731 02:19:08,160 --> 02:19:09,640 ELSE ON THE TEAM. SO I REALLY 3732 02:19:09,640 --> 02:19:11,160 ENCOURAGE PEOPLE TO THINK ABOUT 3733 02:19:11,160 --> 02:19:12,520 SOME OF THESE KIND OF APPROACHES 3734 02:19:12,520 --> 02:19:17,320 WHEN DESIGNING THEIR RESEARCH. 3735 02:19:17,320 --> 02:19:19,480 WE CAN ALSO DO DATA COLLECTION 3736 02:19:19,480 --> 02:19:22,120 WITH COMMUNITY MEMBER FEEDBACK. 3737 02:19:22,120 --> 02:19:24,840 THIS WOULD BE ASKING PEOPLE WITH 3738 02:19:24,840 --> 02:19:26,560 FASD OR OTHER COMMUNITY MEMBERS 3739 02:19:26,560 --> 02:19:28,040 TO COMPLETE INTERVIEWS OR FOCUS 3740 02:19:28,040 --> 02:19:30,800 GROUPS OR SURVEYS TO GATHER 3741 02:19:30,800 --> 02:19:32,440 INFORMATION TO INFORM OUR 3742 02:19:32,440 --> 02:19:34,200 RESEARCH QUESTION, DESIGN OF OUR 3743 02:19:34,200 --> 02:19:34,800 PROGRAM AND OTHER TYPES OF 3744 02:19:34,800 --> 02:19:38,200 THINGS. WE CAN ALSO DO OUTREACH 3745 02:19:38,200 --> 02:19:39,480 AND RELATIONSHIP BUILDING WITHIN 3746 02:19:39,480 --> 02:19:42,520 THE COMMUNITY. THIS HELPS US AS 3747 02:19:42,520 --> 02:19:43,520 RESEARCHERS ASK BETTER 3748 02:19:43,520 --> 02:19:45,080 QUESTIONS, GENERATE HYPOTHESES 3749 02:19:45,080 --> 02:19:47,320 AND UNDERSTAND OUR DATA AND HOW 3750 02:19:47,320 --> 02:19:51,200 WE CAN USE THAT TO INCREASE 3751 02:19:51,200 --> 02:19:54,600 EDUCATION AWARENESS. WE ALSO 3752 02:19:54,600 --> 02:19:56,320 NEED TO BE DIRECTLY TALKING WITH 3753 02:19:56,320 --> 02:19:57,920 PEOPLE WITH FASD AND OTHER 3754 02:19:57,920 --> 02:19:59,240 COMMUNITY MEMBERS TO LEARN WHAT 3755 02:19:59,240 --> 02:20:00,280 RESEARCH QUESTIONS ARE MOST 3756 02:20:00,280 --> 02:20:03,160 IMPORTANT TO THEIR LIVES. AND 3757 02:20:03,160 --> 02:20:05,560 ALSO HOW PROGRAMS CAN BE 3758 02:20:05,560 --> 02:20:06,840 DEVELOPED TO BEST FIT THEIR 3759 02:20:06,840 --> 02:20:11,320 LIVES OR CLINICAL PRACTICE. WE 3760 02:20:11,320 --> 02:20:13,080 CAN COMMUNICATE FINDINGS 3761 02:20:13,080 --> 02:20:14,560 EFFECTIVELY TO THE PUBLIC. 3762 02:20:14,560 --> 02:20:15,680 RESEARCHERS LEARN STRATEGIES TO 3763 02:20:15,680 --> 02:20:16,960 HELP THE PUBLIC UNDERSTAND WHAT 3764 02:20:16,960 --> 02:20:18,680 THEIR RESEARCH FINDINGS AND WHY 3765 02:20:18,680 --> 02:20:20,640 THEY MATTER. AND PEOPLE WITH 3766 02:20:20,640 --> 02:20:23,880 FASD REALLY WANT ACCESSIBLE 3767 02:20:23,880 --> 02:20:24,560 EXPLANATIONS OF WHAT WE HAVE 3768 02:20:24,560 --> 02:20:26,000 LEARN AND WHAT IT MEANS FOR 3769 02:20:26,000 --> 02:20:28,360 THEIR LIVES SO THESE ARE ALL 3770 02:20:28,360 --> 02:20:29,560 VALUABLE TYPES OF HOW WE CAN 3771 02:20:29,560 --> 02:20:34,040 ENGAGE OUR COMMUNITY TO DO THE 3772 02:20:34,040 --> 02:20:37,760 MOST EFFECTIVE RESEARCH. SO NOW 3773 02:20:37,760 --> 02:20:40,840 I'M GOING TO MOVE INTO WHAT 3774 02:20:40,840 --> 02:20:43,440 WORKS BASED ON COMMUNITY ENGAGED 3775 02:20:43,440 --> 02:20:44,520 RESEARCH THAT HAS BEEN DONE SO 3776 02:20:44,520 --> 02:20:46,880 FAR IN FASD. A LOT OF THE 3777 02:20:46,880 --> 02:20:48,520 QUALITATIVE LITERATURE FOCUSES 3778 02:20:48,520 --> 02:20:50,680 ON PROBLEMS AND BARRIERS BUT WE 3779 02:20:50,680 --> 02:20:51,800 HAVE ALSO LEARNED SOME THINGS 3780 02:20:51,800 --> 02:20:56,600 ABOUT WHAT HELPS PEOPLE AND WHAT 3781 02:20:56,600 --> 02:20:57,960 WORKS THESE ARE NOT ALWAYS EASE 3782 02:20:57,960 --> 02:20:59,520 WILL AVAILABLE TO ALL FAMILIES 3783 02:20:59,520 --> 02:21:01,080 BUT KNOWING WHAT THEY ARE IS A 3784 02:21:01,080 --> 02:21:02,320 GREAT STARTING PLACE TO BUILD 3785 02:21:02,320 --> 02:21:04,560 PROGRAMMING AND SYSTEMATIC 3786 02:21:04,560 --> 02:21:06,200 STRATEGIES TO MORE BROADLY 3787 02:21:06,200 --> 02:21:11,960 INCREASE ACCESS. SO I STARTED 3788 02:21:11,960 --> 02:21:13,400 WITH LOOKING AT WHAT IS 3789 02:21:13,400 --> 02:21:15,680 PUBLISHED SO FAR IN RESEARCH AND 3790 02:21:15,680 --> 02:21:18,320 FROM THE PERSPECTIVE OF PEOPLE 3791 02:21:18,320 --> 02:21:20,440 WITH FASD, INCLUDING CHILDREN 3792 02:21:20,440 --> 02:21:22,880 AND ADULTS. SO HERE ARE SOME 3793 02:21:22,880 --> 02:21:24,520 THINGS THAT HAVE COME UP IN 3794 02:21:24,520 --> 02:21:27,000 QUALITATIVE RESEARCH STUDIES. 3795 02:21:27,000 --> 02:21:29,440 THESE INCLUDE SUPPORT FROM 3796 02:21:29,440 --> 02:21:32,880 PARENTS AND FAMILY MEMBERS. 3797 02:21:32,880 --> 02:21:34,440 PROVIDERS WHO UNDERSTAND AND 3798 02:21:34,440 --> 02:21:36,360 HELP ADVOCATE FOR SUPPORTS AND 3799 02:21:36,360 --> 02:21:38,880 SERVICES. PEER MENTORSHIP HAS 3800 02:21:38,880 --> 02:21:42,200 BEEN HIGHLIGHTED AS VALUABLE. 3801 02:21:42,200 --> 02:21:43,960 HAVING PROACTIVE SUPPORTS RATHER 3802 02:21:43,960 --> 02:21:47,600 THAN PEOPLE HAVING TO WAIT OR 3803 02:21:47,600 --> 02:21:49,600 FAIL TO GET THE THINGS THEY NEED 3804 02:21:49,600 --> 02:21:52,480 THAT THEY KNOW WILL BE HELPFUL. 3805 02:21:52,480 --> 02:21:53,880 A REALLY IMPORTANT ONE IS 3806 02:21:53,880 --> 02:21:55,120 FEELING CONNECTED WITH PEERS AND 3807 02:21:55,120 --> 02:21:57,760 THE BROADER COMMUNITY AND HAVING 3808 02:21:57,760 --> 02:21:59,840 MEANINGFUL ACTIVITIES AND 3809 02:21:59,840 --> 02:22:02,920 FINDING THE RIGHT FIT. BEING 3810 02:22:02,920 --> 02:22:04,960 AWARE OF ONE OWN STRENGTHS AND 3811 02:22:04,960 --> 02:22:06,720 NEEDS IS ALSO REALLY HELPFUL FOR 3812 02:22:06,720 --> 02:22:10,360 PEOPLE WITH FASD. BALANCING 3813 02:22:10,360 --> 02:22:12,480 INDEPENDENCE AND ACCEPTING 3814 02:22:12,480 --> 02:22:15,000 SUPPORT IS ANOTHER THING THAT 3815 02:22:15,000 --> 02:22:18,880 HELPS. PUTTING CHALLENGES AND 3816 02:22:18,880 --> 02:22:20,440 PERSPECTIVE, BEING ABLE TO 3817 02:22:20,440 --> 02:22:22,000 RECOGNIZE WHAT YOU NEED, AND 3818 02:22:22,000 --> 02:22:25,640 ALSO HAVING HOPE FOR THE FUTURE 3819 02:22:25,640 --> 02:22:29,480 AND LEARNING AND HAVING COPING 3820 02:22:29,480 --> 02:22:32,000 SKILLS THAT ARE AFFECTIVE IS 3821 02:22:32,000 --> 02:22:33,080 ANOTHER ELEMENT THAT WORKS FOR 3822 02:22:33,080 --> 02:22:43,520 PEOPLE. THEN LIKE WHAT THE 3823 02:22:46,000 --> 02:22:47,160 FAMILIES SHARED IN RESEARCH 3824 02:22:47,160 --> 02:22:48,600 BASED ON THEIR LIVED EXPERIENCE. 3825 02:22:48,600 --> 02:22:50,000 ONE OF THE MOST IMPORTANT THINGS 3826 02:22:50,000 --> 02:22:52,520 IS BEING ABLE TO GET AN FASD 3827 02:22:52,520 --> 02:22:53,640 DIAGNOSIS BECAUSE FAMILIES 3828 02:22:53,640 --> 02:22:55,920 REALLY SHARE THAT IT HELPS THEM 3829 02:22:55,920 --> 02:22:58,920 TAYLOR THE SERVICES AND SUPPORTS 3830 02:22:58,920 --> 02:23:02,680 THEY GET FOR THEIR CHILDREN. 3831 02:23:02,680 --> 02:23:04,040 SIMILAR TO WHAT CHILDREN AND 3832 02:23:04,040 --> 02:23:06,120 ADULTS SAY, HAVING PROFESSIONALS 3833 02:23:06,120 --> 02:23:08,000 WHO GET IT, WHO UNDERSTAND AND 3834 02:23:08,000 --> 02:23:10,560 WHO CAN HELP IS REALLY 3835 02:23:10,560 --> 02:23:14,760 IMPORTANT. ALSO HAVING PROACTIVE 3836 02:23:14,760 --> 02:23:16,760 AND COORDINATED SERVICES IS 3837 02:23:16,760 --> 02:23:19,720 IMPORTANT. MANY FAMILIES ARE 3838 02:23:19,720 --> 02:23:20,840 TRYING TO JUST FEEL LIKE THEY 3839 02:23:20,840 --> 02:23:25,800 ARE DOING TRIAL AND ERROR AND 3840 02:23:25,800 --> 02:23:26,920 WORKING WITHIN SO MANY SYSTEMS 3841 02:23:26,920 --> 02:23:28,800 OF CARE THAT IT FEELS REALLY 3842 02:23:28,800 --> 02:23:31,040 DISORGANIZED SO HAVING SOMETHING 3843 02:23:31,040 --> 02:23:33,880 THAT IS COORDINATED IS REALLY 3844 02:23:33,880 --> 02:23:37,800 HELPFUL. ANOTHER BIG ONE IS 3845 02:23:37,800 --> 02:23:40,480 RESPITE CARE. PARENTS BEING ABLE 3846 02:23:40,480 --> 02:23:46,200 TO HAVE TIME TO REFRESH GET 3847 02:23:46,200 --> 02:23:47,680 SUPPORT AND HAVE BREAK TO BE 3848 02:23:47,680 --> 02:23:48,760 ABLE TO CONTINUE TO PROVIDE A 3849 02:23:48,760 --> 02:23:50,560 HIGH LEVEL OF CARE FOR LOVED 3850 02:23:50,560 --> 02:23:51,760 ONES. FAMILY MEMBERS WORKING 3851 02:23:51,760 --> 02:23:53,040 TOGETHER ALSO HELPS. HAVING 3852 02:23:53,040 --> 02:23:54,600 SUPPORT FROM OTHER FAMILIES WITH 3853 02:23:54,600 --> 02:23:57,600 LIVED EXPERIENCE WHO GET IT IT.S 3854 02:23:57,600 --> 02:23:59,920 REALLY USEFUL. HAVING FASD 3855 02:23:59,920 --> 02:24:01,960 CONFERENCES TRAININGS AND 3856 02:24:01,960 --> 02:24:03,200 SUPPORT GROUPS ARE ALSO REALLY 3857 02:24:03,200 --> 02:24:09,680 IMPORTANT. ANOTHER FEW STUDIES 3858 02:24:09,680 --> 02:24:11,560 HIGHLIGHT THE BENEFITS OF A 3859 02:24:11,560 --> 02:24:13,440 CONCEPT OF REFRAMING IT, MAYBE 3860 02:24:13,440 --> 02:24:15,640 FAMILIAR TO MANY OF YOU BUT I 3861 02:24:15,640 --> 02:24:17,240 WILL GO OVER IT HERE. THIS IDEA 3862 02:24:17,240 --> 02:24:18,800 OF REFRAMING ORIGINALLY CAME 3863 02:24:18,800 --> 02:24:20,600 FROM FAMILIES AND CLINICAL 3864 02:24:20,600 --> 02:24:22,280 WISDOM BUT IS ALSO NOW 3865 02:24:22,280 --> 02:24:23,840 INCORPORATED IN EVIDENCE BASED 3866 02:24:23,840 --> 02:24:24,960 INTERVENTIONS SUCH AS THE 3867 02:24:24,960 --> 02:24:28,400 FAMILIES MOVING FORWARD PROGRAM. 3868 02:24:28,400 --> 02:24:30,000 IN MY GROUP WE DID A STUDY A FEW 3869 02:24:30,000 --> 02:24:32,320 YEARS AGO WHERE WE INTERVIEWED 3870 02:24:32,320 --> 02:24:33,240 FAMILIST AND PROVIDED RESEARCH 3871 02:24:33,240 --> 02:24:36,280 SUPPORT FOR THESE IDEAS. SO HERE 3872 02:24:36,280 --> 02:24:38,520 IS HOW REFRAMING WORKS. IN 3873 02:24:38,520 --> 02:24:41,480 SOCIETY OUR USUAL INTERPRETATION 3874 02:24:41,480 --> 02:24:45,080 IS A BEHAVIOR IS THAT WILLFUL OR 3875 02:24:45,080 --> 02:24:47,160 PURPOSEFUL AND THIS IMPACTS THE 3876 02:24:47,160 --> 02:24:48,640 PARENTING STRATEGIES WE USE AND 3877 02:24:48,640 --> 02:24:50,640 HOW WE FEEL. SO TYPICALLY 3878 02:24:50,640 --> 02:24:52,960 WILLFUL ATTRIBUTIONS OR IDEAS 3879 02:24:52,960 --> 02:24:54,440 ABOUT BEHAVIOR LEAD TO 3880 02:24:54,440 --> 02:24:56,240 CONSEQUENCE STRATEGIES SUCH AS 3881 02:24:56,240 --> 02:24:57,960 PUNISHMENTS, TAKING THINGS AWAY, 3882 02:24:57,960 --> 02:25:00,880 STICKER CHARTS, THINGS THAT 3883 02:25:00,880 --> 02:25:01,600 HAPPEN AFTER BEHAVIOR. THIS 3884 02:25:01,600 --> 02:25:03,440 USUALLY DOESN'T WORK WELL AND 3885 02:25:03,440 --> 02:25:05,440 RESULTS IN FAMILIES FEELING 3886 02:25:05,440 --> 02:25:06,560 INEFFECTIVE AND FRUSTRATED AND 3887 02:25:06,560 --> 02:25:13,080 NOT HAVING A LOT OF SUCCESS 3888 02:25:13,080 --> 02:25:13,960 REFRAMING SEEING THINGS 3889 02:25:13,960 --> 02:25:15,200 DIFFERENTLY. UNDERSTANDING 3890 02:25:15,200 --> 02:25:17,400 BEHAVIOR IN LIGHT OF THE 3891 02:25:17,400 --> 02:25:18,080 NEURODEVELOPMENTAL OR BRAIN 3892 02:25:18,080 --> 02:25:26,800 BASED DISABILITIES 3893 02:25:26,800 --> 02:25:28,600 NON-COMPLIANCE OR NOT COMPLETING 3894 02:25:28,600 --> 02:25:29,840 A TWO STEP INSTRUCTION MAYBE DUE 3895 02:25:29,840 --> 02:25:32,160 TO PROBLEMS WITH ATTENTION 3896 02:25:32,160 --> 02:25:33,720 WORKING MEMORY VERSUS A CHILD 3897 02:25:33,720 --> 02:25:36,000 WHO DOESN'T OBEY. SO FROM THIS 3898 02:25:36,000 --> 02:25:38,240 REFRAMED INTERPRETATION, ADULTS 3899 02:25:38,240 --> 02:25:40,920 CAN USE PROACTIVE AND PREVENTIVE 3900 02:25:40,920 --> 02:25:43,800 STRATEGIES. WE OFTEN CALL THOSE 3901 02:25:43,800 --> 02:25:45,000 ACCOMMODATIONS SO HEAD OFF 3902 02:25:45,000 --> 02:25:47,200 FURTHER PROBLEMS. THIS LEADS TO 3903 02:25:47,200 --> 02:25:49,240 INCREASE SUCCESS AND LESS 3904 02:25:49,240 --> 02:25:50,480 FRUSTRATION FOR EVERYONE 3905 02:25:50,480 --> 02:25:52,320 INVOLVED. SO CONSEQUENCE 3906 02:25:52,320 --> 02:25:54,760 STRATEGIES TEND NOT TO WORK WELL 3907 02:25:54,760 --> 02:25:57,880 FOR PEOPLE WITH FASD BECAUSE 3908 02:25:57,880 --> 02:25:59,960 THEY REQUIRE A NUMBER OF 3909 02:25:59,960 --> 02:26:01,400 EXECUTIVE FUNCTIONING SKILLS 3910 02:26:01,400 --> 02:26:03,520 SUCH AS BEING ABLE TO GENERALIZE 3911 02:26:03,520 --> 02:26:07,880 TO NEW SITUATIONS INHIBIT 3912 02:26:07,880 --> 02:26:10,200 BEHAVIORS AND SOLVING PROBLEMS 3913 02:26:10,200 --> 02:26:12,360 FOR FUTURE BEHAVIORS. THESE CAN 3914 02:26:12,360 --> 02:26:14,080 BE CHALLENGING FOR MANY PEOPLE 3915 02:26:14,080 --> 02:26:16,640 WITH FASD SO DOING THOSE 3916 02:26:16,640 --> 02:26:18,640 PROACTIVE ACCOMMODATIONS CAN BE 3917 02:26:18,640 --> 02:26:22,680 MUCH MORE EFFECTIVE. HERE ARE 3918 02:26:22,680 --> 02:26:23,440 MORE PARENTING STRATEGIES 3919 02:26:23,440 --> 02:26:25,320 FAMILIES SAY WORK. MONITORING. 3920 02:26:25,320 --> 02:26:27,880 USING PROMPTS AND REMINDERS. 3921 02:26:27,880 --> 02:26:29,800 STRUCTURE AND ROUTINE IS VERY 3922 02:26:29,800 --> 02:26:32,880 HELPFUL. SOME PARENTS ALSO 3923 02:26:32,880 --> 02:26:34,120 DESCRIBE KIND OF AN OUTSIDE THE 3924 02:26:34,120 --> 02:26:36,680 BOX PARENTING STRATEGIES, BEING 3925 02:26:36,680 --> 02:26:38,360 CREATIVE AND FINDING WHAT WORKS 3926 02:26:38,360 --> 02:26:41,120 AND ALSO REALLY IMPORTANTLY, 3927 02:26:41,120 --> 02:26:42,040 IDENTIFYING AND SUPPORTING 3928 02:26:42,040 --> 02:26:43,040 STRENGTHS AND INTERESTS OF 3929 02:26:43,040 --> 02:26:47,200 PEOPLE WITH FASD THEMSELVES. I 3930 02:26:47,200 --> 02:26:48,880 ALSO WANT TO BRIEFLY ILLUSTRATE 3931 02:26:48,880 --> 02:26:51,080 HOW COMMUNITY ENGAGED RESEARCH 3932 02:26:51,080 --> 02:26:52,640 STRATEGIES CAN BE USED 3933 02:26:52,640 --> 02:26:54,600 SYSTEMATICALLY TO DEVELOP AND 3934 02:26:54,600 --> 02:26:56,720 TEST NEW PROGRAMS. THIS 3935 02:26:56,720 --> 02:26:58,720 INCREASES THE LIKELIHOOD THAT A 3936 02:26:58,720 --> 02:26:59,960 DEVELOPED PROGRAM IS GOING TO 3937 02:26:59,960 --> 02:27:02,960 MEET THE NEEDS OF PEOPLE WHO 3938 02:27:02,960 --> 02:27:04,320 WILL USE IT AND THAT IT WILL BE 3939 02:27:04,320 --> 02:27:08,160 EFFECTIVE. SO FOR EXAMPLE WE USE 3940 02:27:08,160 --> 02:27:09,440 COMMUNITY ENGAGE RESEARCH 3941 02:27:09,440 --> 02:27:11,080 PRINCIPLES TO CREATE A 3942 02:27:11,080 --> 02:27:12,200 SELF-DIRECTED APP FOR CAREGIVERS 3943 02:27:12,200 --> 02:27:15,200 BASED ON FAMILIES MOVING FORWARD 3944 02:27:15,200 --> 02:27:16,760 PROGRAM. WE USE A SYSTEMATIC 3945 02:27:16,760 --> 02:27:18,320 PROCESS WE GOT FEEDBACK FROM 3946 02:27:18,320 --> 02:27:19,800 CAREGIVERS AND PROVIDERS AT EACH 3947 02:27:19,800 --> 02:27:23,440 STEP ALONG THE WAY. SO FOR 3948 02:27:23,440 --> 02:27:25,080 EXAMPLE, AT START OF THE STUDY 3949 02:27:25,080 --> 02:27:26,880 WE CONDUCTED FOCUS GROUPS WITH 3950 02:27:26,880 --> 02:27:28,080 FAMILIES AND FIVE U.S. STUDIES 3951 02:27:28,080 --> 02:27:29,800 ON INITIAL DESIGN AND COMPONENTS 3952 02:27:29,800 --> 02:27:30,920 BEFORE WE EVEN BUILT THE APP. WE 3953 02:27:30,920 --> 02:27:33,080 WANTED TO MAKE SURE IT WAS ALL 3954 02:27:33,080 --> 02:27:35,720 IN THE RIGHT TRACK BEFORE WE GOT 3955 02:27:35,720 --> 02:27:37,120 TOO FAR DOWN THE ROAD. WE DID A 3956 02:27:37,120 --> 02:27:38,480 COUPLE OF ROUNDS OF BETA 3957 02:27:38,480 --> 02:27:40,360 TESTING, FOLLOWED BY A LARGER 3958 02:27:40,360 --> 02:27:43,760 SCALE FEASIBILITY TES TEST. WE 3959 02:27:43,760 --> 02:27:45,000 INTERVIEWED PARTICIPANTS AFTER 3960 02:27:45,000 --> 02:27:46,880 USING THE APP FOR A WHILE TO 3961 02:27:46,880 --> 02:27:48,200 BETTER UNDERSTAND THEIR 3962 02:27:48,200 --> 02:27:49,880 EXPERIENCES OF WHAT WORKED. WHAT 3963 02:27:49,880 --> 02:27:51,200 DIDN'T WORK SO WELL, AND IDEAS 3964 02:27:51,200 --> 02:27:54,240 TO MAKE IT BETTER. AND LAST YEAR 3965 02:27:54,240 --> 02:27:57,080 WE COMPLETED WHAT IS CALLED A 3966 02:27:57,080 --> 02:27:58,600 RANDOMIZED CONTROL TRIAL TO TEST 3967 02:27:58,600 --> 02:28:00,520 IF THE APP PRODUCED CHANGE FOR 3968 02:28:00,520 --> 02:28:02,280 FAMILIES. THIS IS KIND OF THE 3969 02:28:02,280 --> 02:28:03,400 LAST FINAL STEP AND WE WERE 3970 02:28:03,400 --> 02:28:07,720 REALLY EXCITED TO SEE IT WAS 3971 02:28:07,720 --> 02:28:09,720 EFFECTIVE IMPROVING THOSE 3972 02:28:09,720 --> 02:28:11,320 REFRAMING SKILLS AND PARENTING 3973 02:28:11,320 --> 02:28:13,240 SATISFACTION. SO WE ARE EXCITED 3974 02:28:13,240 --> 02:28:14,480 AND WORKING ON GETTING THAT 3975 02:28:14,480 --> 02:28:18,680 PAPER OUT SOON. MY FAVORITE 3976 02:28:18,680 --> 02:28:22,640 PROJECT SO FAR HAS BEEN MY 3977 02:28:22,640 --> 02:28:24,760 HEALTH COACH, WHICH IS A STUDY 3978 02:28:24,760 --> 02:28:26,000 IN WHICH WE HAVE BEEN DEVELOPING 3979 02:28:26,000 --> 02:28:28,320 AN APP FOR ADULTS WITH FASD. SO 3980 02:28:28,320 --> 02:28:29,800 OVER THE LAST TWO YEARS WE HAVE 3981 02:28:29,800 --> 02:28:31,480 BEEN PARTNERING WITH MEMBERS OF 3982 02:28:31,480 --> 02:28:33,240 THE ADULT LEADERSHIP COMMITTEE 3983 02:28:33,240 --> 02:28:35,280 AT THE FASD CHANGE MAKERS TO 3984 02:28:35,280 --> 02:28:37,600 CO-DESIGN AND TEST THE APP. SO 3985 02:28:37,600 --> 02:28:41,280 THIS IS KIND OF A BLEND BETWEEN 3986 02:28:41,280 --> 02:28:42,560 COMMUNITY ADVISORY BOARDS OR 3987 02:28:42,560 --> 02:28:44,920 COMMUNITY BASED PARTICIPATORY 3988 02:28:44,920 --> 02:28:47,520 RESEARCH. THE MEMBERS OF THE ALC 3989 02:28:47,520 --> 02:28:49,240 HAVE BEEN ACTIVE ON ALL PARTS OF 3990 02:28:49,240 --> 02:28:52,160 THE STUDY INCLUDING DATA 3991 02:28:52,160 --> 02:28:53,920 COLLECTION, RECRUITMENT, 3992 02:28:53,920 --> 02:28:55,600 DESIGNING THE APP AND SO ON. SO 3993 02:28:55,600 --> 02:28:58,080 THEY REALLY ENSURE WE ASK THE 3994 02:28:58,080 --> 02:29:00,400 RIGHT QUESTIONS, AVOID STIGMA 3995 02:29:00,400 --> 02:29:03,040 AND TAKE A STRIDES BASED 3996 02:29:03,040 --> 02:29:04,480 APPROACH TO THE TOOLS WE WERE 3997 02:29:04,480 --> 02:29:06,240 DEVELOPING AND ALSO SOME OF 3998 02:29:06,240 --> 02:29:07,520 THOSE FUN MEETS I GET TO HAVE. 3999 02:29:07,520 --> 02:29:09,200 JUST WANT TO HIGHLIGHT FOCUS 4000 02:29:09,200 --> 02:29:11,560 GROUP AND VARY RESULTS THAT THE 4001 02:29:11,560 --> 02:29:14,320 ALC HELPED US COLLECT AND 4002 02:29:14,320 --> 02:29:19,360 ANALYZE AND SO WHAT WE FOUND IS 4003 02:29:19,360 --> 02:29:20,760 THAT PARTICIPANTS WHO DID THE 4004 02:29:20,760 --> 02:29:23,960 FOCUS GROUPS OR VARIES FOUND THE 4005 02:29:23,960 --> 02:29:25,640 APP TO BE OVERALL POSITIVE AND 4006 02:29:25,640 --> 02:29:27,160 IN LINE WITH SOME OF THE NEEDS 4007 02:29:27,160 --> 02:29:31,760 THEY HAVE. THEY ALSO FOUND THE 4008 02:29:31,760 --> 02:29:34,440 APP FEATURES WERE ACCEPTABLE TO 4009 02:29:34,440 --> 02:29:35,720 PARTICIPANTS, THE APP LOOKED 4010 02:29:35,720 --> 02:29:37,320 RELATIVELY EASY TO USE AND WAS 4011 02:29:37,320 --> 02:29:39,240 SEEN AS A TOOL THAT CAN HELP 4012 02:29:39,240 --> 02:29:40,480 THEM WITH MANAGING THEIR 4013 02:29:40,480 --> 02:29:43,320 SYMPTOMS AND ADVOCACY AND 4014 02:29:43,320 --> 02:29:45,760 PARTICIPANTS OFFERED A WHOLE 4015 02:29:45,760 --> 02:29:47,440 RANGE OF RECOMMENDATIONS TO HELP 4016 02:29:47,440 --> 02:29:49,280 WITH ACCESSIBILITY AND 4017 02:29:49,280 --> 02:29:50,320 ACCOUNTABILITY AND NEW FEATURES 4018 02:29:50,320 --> 02:29:52,520 AND DESIGNS SO WE ARE EXCITED. I 4019 02:29:52,520 --> 02:29:54,680 THINK THE APP IS ACTUALLY BEING 4020 02:29:54,680 --> 02:29:56,000 RELEASED TO OUR FIRST GROUP OF 4021 02:29:56,000 --> 02:29:57,360 PARTICIPANTS AS I SPEAK. SO 4022 02:29:57,360 --> 02:29:58,480 EXCITED TO SEE HOW THEY 4023 02:29:58,480 --> 02:30:03,120 APPRECIATE THAT. OUR -- THE ALC 4024 02:30:03,120 --> 02:30:04,600 MEMBERS AS WELL AS RESEARCH 4025 02:30:04,600 --> 02:30:06,480 COORDINATOR ON THIS PROJECT ALSO 4026 02:30:06,480 --> 02:30:09,800 INITIATED A STUDY TO IDENTIFY 4027 02:30:09,800 --> 02:30:13,560 WHAT HELPS ADULTS WITH FASD FEEL 4028 02:30:13,560 --> 02:30:17,480 INCLUDED IN COMMUNITY ADVISORY 4029 02:30:17,480 --> 02:30:19,360 BOARDS. THESE NINE ITEMS THAT I 4030 02:30:19,360 --> 02:30:21,520 HAVE LISTED HERE ARE PART OF 4031 02:30:21,520 --> 02:30:25,720 BARBARA ISRAEL'S FRAMEWORK ON 4032 02:30:25,720 --> 02:30:28,280 COMMUNITY ENGAGED RESEARCH, BEST 4033 02:30:28,280 --> 02:30:30,280 PRACTICES. THROUGH TWO ROUNDS OF 4034 02:30:30,280 --> 02:30:32,920 INTERVIEWS AND SURVEY WITH ALC 4035 02:30:32,920 --> 02:30:35,560 WE LEARNED ALC MEMBERS 4036 02:30:35,560 --> 02:30:36,960 EXPERIENCED NEARLY ALL OF THESE 4037 02:30:36,960 --> 02:30:38,520 EXPERIENCES AND THEY HAVE HELPED 4038 02:30:38,520 --> 02:30:41,400 THEM REALLY FEEL A FULL MEMBER 4039 02:30:41,400 --> 02:30:43,960 OF THE TEAM AND BEEN ABLE TO 4040 02:30:43,960 --> 02:30:45,720 SHARE THEIR VIEWS. I KNOW WE 4041 02:30:45,720 --> 02:30:48,240 HAVE A COUPLE OF ALC MEMBERS ON 4042 02:30:48,240 --> 02:30:49,120 THE PANEL TODAY SO I'M SURE THEY 4043 02:30:49,120 --> 02:30:51,240 WOULD BE HAPPY TO ANSWER A BIT 4044 02:30:51,240 --> 02:30:55,640 MORE ABOUT THAT. BEFORE WE WRAP 4045 02:30:55,640 --> 02:30:56,440 UP THIS PORTION, BEFORE WE GET 4046 02:30:56,440 --> 02:30:57,200 TO THE PANEL 4047 02:30:57,200 --> 02:31:00,360 >> I JUST WANTED TO OFFER A FEW 4048 02:31:00,360 --> 02:31:03,440 NEXT STEPS AN DIRECTIONS. SO 4049 02:31:03,440 --> 02:31:05,880 ONE IMPORTANT STEP THAT I SEE IS 4050 02:31:05,880 --> 02:31:08,960 SHIFTING OUR VIEW FROM ONE OF 4051 02:31:08,960 --> 02:31:10,640 SURVIVING TO ONE FOCUSING MORE 4052 02:31:10,640 --> 02:31:12,800 ON THRIVING FOR PEOPLE WITH 4053 02:31:12,800 --> 02:31:14,560 FASD. THE BIG POINT HERE IS 4054 02:31:14,560 --> 02:31:17,040 REALLY SHIFTING FROM A PURELY 4055 02:31:17,040 --> 02:31:20,080 DEFICIT FOCUSED VIEW TO 4056 02:31:20,080 --> 02:31:21,400 STRENGTHS BASED. WE KNOW THIS 4057 02:31:21,400 --> 02:31:24,680 SORT OF DEFICIT VIEW REALLY 4058 02:31:24,680 --> 02:31:27,440 FOCUSES MORE ON WHAT PROBLEMS 4059 02:31:27,440 --> 02:31:29,040 ARE AND ITS PRESCRIPTIVE, 4060 02:31:29,040 --> 02:31:31,080 WHEREAS IF WE MOVE TO MORE A 4061 02:31:31,080 --> 02:31:33,400 THRIVING VIEWPOINT, WE REALLY 4062 02:31:33,400 --> 02:31:34,760 THINK ABOUT AN INDIVIDUAL 4063 02:31:34,760 --> 02:31:36,640 QUALITY OF LIFE AND WHAT IS MOST 4064 02:31:36,640 --> 02:31:37,960 IMPORTANT TO THEM REALLY 4065 02:31:37,960 --> 02:31:39,440 FOCUSING ON THEIR STRENGTHS AND 4066 02:31:39,440 --> 02:31:40,920 HOW WE CAN LEVERAGE THOSE TO 4067 02:31:40,920 --> 02:31:43,160 HELP THEM HAVE A LIFE WORTH 4068 02:31:43,160 --> 02:31:45,400 LIVING. TO DO THIS THOUGH IT IS 4069 02:31:45,400 --> 02:31:47,040 GOING TO BE IMPORTANT WE ATTEND 4070 02:31:47,040 --> 02:31:48,560 TO SOME OF THE BARRIERS THAT WE 4071 02:31:48,560 --> 02:31:51,800 FACE IN THE FIELD INCLUDING 4072 02:31:51,800 --> 02:31:53,240 LIMITED AWARENESS AND 4073 02:31:53,240 --> 02:31:54,440 UNDERSTANDING, ACCESS TO CARE, 4074 02:31:54,440 --> 02:31:57,760 AND STIGMA. BUT I THINK SOME OF 4075 02:31:57,760 --> 02:31:59,240 THE THINGS WE HAVE HIGHLIGHTED 4076 02:31:59,240 --> 02:32:01,640 TODAY REALLY OFFER SOME GREAT 4077 02:32:01,640 --> 02:32:03,200 DIRECTIONS FOR MOVING FORWARD 4078 02:32:03,200 --> 02:32:06,880 AND HOW TO DEVELOP PROGRAMS. AS 4079 02:32:06,880 --> 02:32:10,240 WE DO THIS THE FINAL THING I 4080 02:32:10,240 --> 02:32:14,120 OFFER IS REALLY USING WHAT SOME 4081 02:32:14,120 --> 02:32:16,200 OF THE FRAMEWORKS AND APPROACHES 4082 02:32:16,200 --> 02:32:17,120 THAT WE HAVE LEARNED FROM A 4083 02:32:17,120 --> 02:32:20,320 FIELD CALLED DISSEMINATION 4084 02:32:20,320 --> 02:32:22,240 IMPLEMENTATION SCIENCE. I THINK 4085 02:32:22,240 --> 02:32:24,360 COULD OFFER A LOT TO REALLY HELP 4086 02:32:24,360 --> 02:32:26,640 US IN OUR FIELDS OVERCOME SOME 4087 02:32:26,640 --> 02:32:31,800 OF THESE BARRIERS. IT CAN HELP 4088 02:32:31,800 --> 02:32:33,720 US LEVERAGE WHAT WE HAVE FOUND 4089 02:32:33,720 --> 02:32:36,360 WORKS AND THINKING ABOUT WAYS TO 4090 02:32:36,360 --> 02:32:37,920 OVERCOME BARRIERS AND INCREASE 4091 02:32:37,920 --> 02:32:42,280 THOSE FACILITATORS TO GET THESE 4092 02:32:42,280 --> 02:32:43,440 TYPES OF PROGRAMS OUT INTO THE 4093 02:32:43,440 --> 02:32:50,160 COMMUNITY. A BIG PART OF D AND 4094 02:32:50,160 --> 02:32:51,520 I DISSEMINATION IMPLEMENTATION 4095 02:32:51,520 --> 02:32:53,280 RESEARCH INVOLVES COMMUNITY BACK 4096 02:32:53,280 --> 02:32:55,080 PRACTICES SUCH AS ENGAGING 4097 02:32:55,080 --> 02:32:56,760 CLIENTS, ADMINISTRATORS, PEOPLE 4098 02:32:56,760 --> 02:32:58,440 WITH FASD TO FIGURE HOW WE GET 4099 02:32:58,440 --> 02:33:01,680 THAT INTO PRACTICE. SO BEFORE 4100 02:33:01,680 --> 02:33:05,880 WE MOVE TO THE PANEL I VISIT OUR 4101 02:33:05,880 --> 02:33:07,120 WORD CLOUD ONE MORE TIME SO WE 4102 02:33:07,120 --> 02:33:09,440 CAN SEE THE FINAL CONCLUSION OF 4103 02:33:09,440 --> 02:33:11,800 OUR -- WHO ALL IS PART OF OUR 4104 02:33:11,800 --> 02:33:13,160 COMMUNITY AS WE THINK ABOUT THAT 4105 02:33:13,160 --> 02:33:14,920 MOVING INTO OUR DISCUSSION. 4106 02:33:14,920 --> 02:33:17,080 THANK YOU, EVERYBODY. I WILL 4107 02:33:17,080 --> 02:33:23,240 HAND IT OVER TO JAN. 4108 02:33:23,240 --> 02:33:24,400 >> GOOD AFTERNOON. I'M JUST 4109 02:33:24,400 --> 02:33:28,000 GOING TO DELAY ANY QUESTIONS FOR 4110 02:33:28,000 --> 02:33:32,440 CHRISTIE TO AFTER THE PANEL 4111 02:33:32,440 --> 02:33:34,280 SPEAKS I JUST WANT TO SAY IT IS 4112 02:33:34,280 --> 02:33:37,480 WHAT I THINK YOU ARE GOING TO 4113 02:33:37,480 --> 02:33:38,840 HEAR WILL BE INFORMATIVE AND 4114 02:33:38,840 --> 02:33:40,880 INSTRUCTIVE AND I'M REALLY 4115 02:33:40,880 --> 02:33:43,080 PLEASED TO BE ABLE TO INTRODUCE 4116 02:33:43,080 --> 02:33:44,520 THEM. NOT GOING TO INTRODUCE 4117 02:33:44,520 --> 02:33:48,520 EACH TO YOU BECAUSE THEIR BIOs 4118 02:33:48,520 --> 02:33:50,320 ARE ONLINE AND I HOPE YOU HAVE 4119 02:33:50,320 --> 02:33:51,960 OR WILL READ THEM. THE ORDER OF 4120 02:33:51,960 --> 02:33:59,320 SPEAKERS IS KATHY HOTELLING. 4121 02:33:59,320 --> 02:34:03,120 FOLLOWED BY NICK DAVIS 4122 02:34:03,120 --> 02:34:05,600 MAGLIOZZI, THEN JUSTIN SHEPHERD, 4123 02:34:05,600 --> 02:34:07,880 KATHY MITCHELL WHO IS ANOTHER 4124 02:34:07,880 --> 02:34:09,480 PARENT. I ASKED EACH OF THEM TO 4125 02:34:09,480 --> 02:34:11,040 LIMIT WHAT THEY WANT TO SAY TO 4126 02:34:11,040 --> 02:34:12,480 FIVE MINUTES SO THAT WE CAN HAVE 4127 02:34:12,480 --> 02:34:15,040 LOTS OF TIMES FOR QUESTIONS TO 4128 02:34:15,040 --> 02:34:18,480 THE PANEL BY THOSE ONLINE AS 4129 02:34:18,480 --> 02:34:20,560 WELL AS MYSELF AND HAVE SOME 4130 02:34:20,560 --> 02:34:22,440 REAL DISCUSSION. KATHY, WHEREVER 4131 02:34:22,440 --> 02:34:33,000 YOU ARE, CAN I ASK YOU TO BEGIN 4132 02:34:37,440 --> 02:34:40,120 I SEE JAN, I DON'T SEE ME. 4133 02:34:40,120 --> 02:34:42,280 >> I'M LOOKING AT THIS A LITTLE 4134 02:34:42,280 --> 02:34:44,040 BIT LIKE WHAT IS HAPPENING HERE 4135 02:34:44,040 --> 02:34:49,360 >> WE CAN HEAR YOU AND I CAN SEE 4136 02:34:49,360 --> 02:34:49,720 YOU. 4137 02:34:49,720 --> 02:34:51,440 >> GOOD. THANK YOU. THANK YOU 4138 02:34:51,440 --> 02:34:57,520 FOR HAVING ME TODAY. I AM THE 4139 02:34:57,520 --> 02:35:00,880 PARENT OF 29-YEAR-OLD DAUGHTER 4140 02:35:00,880 --> 02:35:02,120 AND I HAVE BEEN ASKED TO SPEAK 4141 02:35:02,120 --> 02:35:09,440 ABOUT WHAT IS WORKING. IT IS 4142 02:35:09,440 --> 02:35:13,840 WITH SOMEWHAT CHAGRIN, NOT SURE 4143 02:35:13,840 --> 02:35:15,200 WHAT TO CALL IT THAT I HAVE TO 4144 02:35:15,200 --> 02:35:16,880 SAY THAT FIRST WHAT WORKED FOR 4145 02:35:16,880 --> 02:35:20,440 MY DAUGHTER IS THAT SHE COMES 4146 02:35:20,440 --> 02:35:23,520 FROM A WHITE HIGHLY EDUCATED AND 4147 02:35:23,520 --> 02:35:28,080 PRIVILEGED FAMILY. I HAVE BEEN 4148 02:35:28,080 --> 02:35:29,600 HOME WITH -- I HAVE BEEN A 4149 02:35:29,600 --> 02:35:34,520 SINGLE PARENT FOR 17 YEARS. I 4150 02:35:34,520 --> 02:35:36,440 WAS ABLE TO RETIRE FROM THE 4151 02:35:36,440 --> 02:35:39,720 STATE OF ILLINOIS 16 YEARS AGO 4152 02:35:39,720 --> 02:35:46,200 TO STAY HOME WITH HER AND TO 4153 02:35:46,200 --> 02:35:48,760 NAVIGATE HER LIFE FROM AGE 13 4154 02:35:48,760 --> 02:35:55,040 UNTIL NOW. I CAN'T UNDERSCORE 4155 02:35:55,040 --> 02:35:57,520 HOW IMPORTANT THAT IS ALTHOUGH 4156 02:35:57,520 --> 02:36:01,760 HOW AT SOME LEVEL IT'S -- IT 4157 02:36:01,760 --> 02:36:05,360 PAINS ME AND IS EMBARRASSING FOR 4158 02:36:05,360 --> 02:36:08,720 ME TO SAY THAT. I THINK THAT 4159 02:36:08,720 --> 02:36:11,040 ZERO TO THREE SERVICES 4160 02:36:11,040 --> 02:36:15,120 DEFINITELY BENEFITED SASHA. SHE 4161 02:36:15,120 --> 02:36:17,240 WAS THREE FULL MONTHS PREMATURE 4162 02:36:17,240 --> 02:36:19,840 SO SHE AUTOMATICALLY GOT THAT 4163 02:36:19,840 --> 02:36:22,080 ONCE HER PHYSICIAN PUT THAT INTO 4164 02:36:22,080 --> 02:36:24,720 PLACE. SHE HAD IN ADDITION TO 4165 02:36:24,720 --> 02:36:28,560 THAT, SHE HAD OTPT SPEECH 4166 02:36:28,560 --> 02:36:30,480 LANGUAGE, THROUGH HER IEP, SHE 4167 02:36:30,480 --> 02:36:34,760 HAD ADAPTIVE PE BECAUSE OF HER 4168 02:36:34,760 --> 02:36:35,720 COORDINATION PROBLEMS. I WAS 4169 02:36:35,720 --> 02:36:39,040 ABLE TO GIVE HER WEEKLY HORSE 4170 02:36:39,040 --> 02:36:41,960 BACK RIDING WHICH IMPROVED HER 4171 02:36:41,960 --> 02:36:48,840 VISUAL HAND TO EYE COORDINA COO. 4172 02:36:48,840 --> 02:36:51,320 SHE HAD AN IEP AND WENT TO AN 4173 02:36:51,320 --> 02:36:52,840 EXCELLENT CAMPUS CHILD CARE 4174 02:36:52,840 --> 02:36:58,040 WHERE I WORKED. THEY HELPED ME 4175 02:36:58,040 --> 02:37:00,480 PREPARE FOR HER IEP AND HER IEP 4176 02:37:00,480 --> 02:37:03,720 WAS BASED ON HER DIAGNOSIS OF 4177 02:37:03,720 --> 02:37:05,720 ADHD AT THAT TIME WHEN SHE 4178 02:37:05,720 --> 02:37:09,120 ENTERED INTO THE PUBLIC SCHOOL 4179 02:37:09,120 --> 02:37:10,000 SYSTEM. I KEPT SAYING I DON'T 4180 02:37:10,000 --> 02:37:14,360 THINK THIS IS REALLY ADHD IN THE 4181 02:37:14,360 --> 02:37:14,880 FRA DIVISIONAL SENSE. -- 4182 02:37:14,880 --> 02:37:17,240 TRADITIONAL SENSE. HER DIAGNOSIS 4183 02:37:17,240 --> 02:37:18,840 DIDN'T COME UNTIL SHE WAS TEN 4184 02:37:18,840 --> 02:37:26,680 AND A HALF. ONLY BECAUSE I 4185 02:37:26,680 --> 02:37:31,320 PURSUED THAT. I ALSO 4186 02:37:31,320 --> 02:37:32,360 INSTINCTIVELY KNEW WHAT 4187 02:37:32,360 --> 02:37:34,400 ACCOMMODATIONS SHE NEEDED IN HER 4188 02:37:34,400 --> 02:37:36,360 IEP THOUGH I'M TRAIN AS A 4189 02:37:36,360 --> 02:37:38,440 PSYCHOLOGIST, I'M A CLINICAL 4190 02:37:38,440 --> 02:37:40,680 PSYCHOLOGIST, I REALLY 4191 02:37:40,680 --> 02:37:41,760 TRUTHFULLY KNEW NOTHING ABOUT 4192 02:37:41,760 --> 02:37:43,440 DEVELOPMENTAL DISABILITIES AN 4193 02:37:43,440 --> 02:37:46,240 CERTAINLY NOT ABOUT FASD, IT WAS 4194 02:37:46,240 --> 02:37:49,040 NEVER MENTIONED IN MY TRAINING 4195 02:37:49,040 --> 02:37:54,400 UNTIL MY DAUGHTER WAS DIAGNOSED 4196 02:37:54,400 --> 02:37:56,560 MY FIRST STEP WAS TRAINING BY 4197 02:37:56,560 --> 02:37:59,240 DIANE MELVIN IN THE NEURAL 4198 02:37:59,240 --> 02:38:00,920 BEHAVIORAL APPROACH, THAT HAS 4199 02:38:00,920 --> 02:38:06,560 CHANGED OUR LIVES 180 DEGREES 4200 02:38:06,560 --> 02:38:08,120 AROUND I TEACH THAT TO PEOPLE 4201 02:38:08,120 --> 02:38:11,160 WHO HAVE CONTACT WITH HER WITH 4202 02:38:11,160 --> 02:38:14,320 THE SCHOOLINGS, ET CETERA, IT 4203 02:38:14,320 --> 02:38:15,680 HAS MADE A WORLD OF DIFFERENCE 4204 02:38:15,680 --> 02:38:16,920 AND WITHIN TWO WEEKS OF ME 4205 02:38:16,920 --> 02:38:19,160 HAVING THAT TRAINING SHE 4206 02:38:19,160 --> 02:38:20,960 IRONICALLY SAID TO HER 4207 02:38:20,960 --> 02:38:23,960 PSYCHIATRIST, MY MOTHER IS A LOT 4208 02:38:23,960 --> 02:38:27,000 MORE RELAXED THAN SHE USED TO 4209 02:38:27,000 --> 02:38:29,760 BE. THAT IS AN INTERESTING WORD. 4210 02:38:29,760 --> 02:38:30,920 I FELT LIKE I FINALLY KNEW WHAT 4211 02:38:30,920 --> 02:38:34,240 I WAS DOING BECAUSE THE 4212 02:38:34,240 --> 02:38:35,560 APPROACHES I HAD BEEN USING BOTH 4213 02:38:35,560 --> 02:38:39,680 THAT I KNEW AS A THERAPIST AND 4214 02:38:39,680 --> 02:38:43,080 AS A TEACHER EDUCATOR AND AS A 4215 02:38:43,080 --> 02:38:44,760 PARENT WERE TOTALLY 4216 02:38:44,760 --> 02:38:51,840 INAPPROPRIATE AND GOING NOWHERE 4217 02:38:51,840 --> 02:38:55,400 GETTINGS RESPITE WAS VITAL. 4218 02:38:55,400 --> 02:38:59,760 BEING A PARENT 24/7 AND I FEEL 4219 02:38:59,760 --> 02:39:04,360 LIKE I AM STILL A PARENT 24/7 AT 4220 02:39:04,360 --> 02:39:08,080 29 YEARS IS EXHAUSTING, 4221 02:39:08,080 --> 02:39:11,080 ISOLATING AND WE ARGUE ABOUT 4222 02:39:11,080 --> 02:39:13,800 WHOSE RESPITE IS IT, HERS OR 4223 02:39:13,800 --> 02:39:15,400 MINE AND I GUESS IT IS BOTH OF O 4224 02:39:15,400 --> 02:39:17,640 OURS. I WAS FINALLY ABLE TO GET 4225 02:39:17,640 --> 02:39:19,920 RESPITE WHEN SHE WAS PLACED ON 4226 02:39:19,920 --> 02:39:22,440 THE INNOVATIONS WAIVER. I HAD 4227 02:39:22,440 --> 02:39:25,040 LIVED IN TWO DIFFERENT STATES 4228 02:39:25,040 --> 02:39:26,960 DURING HER LIFETIME. I WAS NEVER 4229 02:39:26,960 --> 02:39:28,960 TOLD ABOUT THE INNOVATIONS 4230 02:39:28,960 --> 02:39:30,320 WAIVER WHICH EXIST IN EVERY 4231 02:39:30,320 --> 02:39:36,120 STATE. I WAS NOT TOLD BY ANYONE, 4232 02:39:36,120 --> 02:39:38,480 TEACHER PARENT PHYSICIAN ALLIED 4233 02:39:38,480 --> 02:39:40,880 HEALTH, ET CETERA. BUT I FOUND 4234 02:39:40,880 --> 02:39:43,760 MYSELF AT A MEETING AND I SAID 4235 02:39:43,760 --> 02:39:45,200 TO SOMEONE SITTING NEXT TO ME, 4236 02:39:45,200 --> 02:39:46,880 WHAT IS THIS ABOUT? SHE SAID OH 4237 02:39:46,880 --> 02:39:49,040 MY GOSH, ISN'T YOUR DAUGHTER ON 4238 02:39:49,040 --> 02:39:52,560 THIS WAIT LIST? SO ONCE WE GOT 4239 02:39:52,560 --> 02:39:55,080 ON THE WAIT LIST SHE WAS ABLE TO 4240 02:39:55,080 --> 02:39:58,600 GET RESPITE WEEKLY OR WE WERE. 4241 02:39:58,600 --> 02:40:01,600 WHAT ELSE HAS WORKED, I HAVE 4242 02:40:01,600 --> 02:40:03,920 SERVED AS HER EXTERNAL BRAIN. 4243 02:40:03,920 --> 02:40:04,920 NON-STOP, HELPING HER MAKE 4244 02:40:04,920 --> 02:40:07,280 DECISION, POINTING HER IN THE 4245 02:40:07,280 --> 02:40:09,000 RIGHT DIRECTION, HELPING HER 4246 02:40:09,000 --> 02:40:09,920 THINK ABOUT THINGS IN A 4247 02:40:09,920 --> 02:40:14,880 DIFFERENT WAY. I CANNOT 4248 02:40:14,880 --> 02:40:16,440 UNDERESTIMATE THE HELP THAT 4249 02:40:16,440 --> 02:40:20,880 GOING TO THE VAN COOPER 4250 02:40:20,880 --> 02:40:23,520 CONFERENCE HAS MADE OUR LIVES 4251 02:40:23,520 --> 02:40:26,720 WORK. I WAS ABLE TO TAKE SASHA 4252 02:40:26,720 --> 02:40:27,760 SEVERAL TIMES AND SHE CONNECTED 4253 02:40:27,760 --> 02:40:29,960 WITH PEOPLE. I CONNECTED WITH 4254 02:40:29,960 --> 02:40:31,120 OTHER PARENTS AND I LEARNED AND 4255 02:40:31,120 --> 02:40:37,120 HAVE BEEN STUDYING FASD FOR OVER 4256 02:40:37,120 --> 02:40:40,200 16 YEARS. WE FOUND HER FIRST 4257 02:40:40,200 --> 02:40:41,480 PSYCHIATRIST AFTER SIX 4258 02:40:41,480 --> 02:40:43,920 PSYCHIATRISTS THAT ACTUALLY KNEW 4259 02:40:43,920 --> 02:40:45,680 ABOUT FASD AND SHE SAW THAT 4260 02:40:45,680 --> 02:40:51,400 WOMAN FROM 16 TO 24 THAT MADE A 4261 02:40:51,400 --> 02:40:53,880 WORLD OF DIFFERENCE IN TERMS OF 4262 02:40:53,880 --> 02:40:56,080 MEDICATION SHE WAS GIVEN. 4263 02:40:56,080 --> 02:40:58,280 CURRENTLY SHE HAS A PSYCHIATRIST 4264 02:40:58,280 --> 02:41:01,280 WHO IS OPEN TO LEARNING ABOUT 4265 02:41:01,280 --> 02:41:03,400 FASD UTILIZES THE MATTHEWS 4266 02:41:03,400 --> 02:41:05,960 PROTOCOL AND THE FASD ALGORITHM 4267 02:41:05,960 --> 02:41:08,760 WHICH IS OUT OF CANADA AND THAT 4268 02:41:08,760 --> 02:41:11,320 HAS BEEN EXTREMELY USEFUL. SHE 4269 02:41:11,320 --> 02:41:15,200 IS -- SHE ALSO HAS HIGH ANXIETY 4270 02:41:15,200 --> 02:41:19,280 BIPOLAR DISORDER, AND 4271 02:41:19,280 --> 02:41:21,080 CHARACTERISTICS BUT NOT FULL 4272 02:41:21,080 --> 02:41:26,000 BLOWN DIAGNOSES OF -- FULL BLOWN 4273 02:41:26,000 --> 02:41:34,240 OTHER DIAGNOSE DIAGNOSES. THROUR 4274 02:41:34,240 --> 02:41:35,360 SEALS WE HAVE BEEN ABLE TO 4275 02:41:35,360 --> 02:41:37,520 ACCESS COACHING THE REPEAT LINE 4276 02:41:37,520 --> 02:41:39,120 AND COACHING WHERE SHE HAS BEEN 4277 02:41:39,120 --> 02:41:41,400 ABLE TO GO TO A RESOURCE SENOR. 4278 02:41:41,400 --> 02:41:45,880 THAT HAS BEEN -- THAT DEFINITELY 4279 02:41:45,880 --> 02:41:48,160 IS WORKING. THE CHARACTERISTICS 4280 02:41:48,160 --> 02:41:49,640 HER PERSONALITY CHARACTERISTIC 4281 02:41:49,640 --> 02:41:53,400 AND MY OWN OF PERSEVERANCE, OF 4282 02:41:53,400 --> 02:41:55,960 BUILDING ON HER STRENGTHS AND 4283 02:41:55,960 --> 02:41:58,600 UTILIZING THEM IN THE PROCESS OF 4284 02:41:58,600 --> 02:42:00,680 HER LEARNING MATERIALS THAT SHE 4285 02:42:00,680 --> 02:42:04,640 MIGHT NOT USE AS READILY AS SHE 4286 02:42:04,640 --> 02:42:08,960 WOULD OTHERWISE ARE REALLY 4287 02:42:08,960 --> 02:42:13,360 IMPORTANT TO THE SUCCESS SHE HAS 4288 02:42:13,360 --> 02:42:16,640 HAD THUS FAR. I HAVE TO SAY THAT 4289 02:42:16,640 --> 02:42:19,360 NONE OF WHAT SHE HAS RECEIVED 4290 02:42:19,360 --> 02:42:22,360 WITH THE EXCEPTION OF THAT 4291 02:42:22,360 --> 02:42:24,000 PSYCHIATRIST FOR EIGHT YEARS AND 4292 02:42:24,000 --> 02:42:29,240 THE CURRENT MENTORING THAT SHE 4293 02:42:29,240 --> 02:42:32,600 RECEIVES FROM CJ LUTKE ARE FASD 4294 02:42:32,600 --> 02:42:33,920 INFORMED. THESE ARE GENERAL 4295 02:42:33,920 --> 02:42:37,040 SERVICES FOR THOSE IN THE 4296 02:42:37,040 --> 02:42:43,160 DEVELOPMENTAL DISABILITY WORLD 4297 02:42:43,160 --> 02:42:44,800 MANY DO NOT KNOW ABOUT THESE 4298 02:42:44,800 --> 02:42:46,360 SERVICES BUT BECAUSE I HAVE BEEN 4299 02:42:46,360 --> 02:42:48,760 ABLE TO BE HOME AND LEARN AND 4300 02:42:48,760 --> 02:42:51,600 STUDY AND THAT IS MY INCLINATION 4301 02:42:51,600 --> 02:42:54,440 ANYWAY AS A HIGHER EDUCATION 4302 02:42:54,440 --> 02:42:58,040 FACULTY MEMBER, I HAVE DONE 4303 02:42:58,040 --> 02:43:01,720 THAT. AND BUT IT IS NOT BECAUSE 4304 02:43:01,720 --> 02:43:04,840 ANYTHING SHE HAS PARTICIPATED IN 4305 02:43:04,840 --> 02:43:06,680 IS FASD INFORMED WITH THE 4306 02:43:06,680 --> 02:43:09,640 EXCEPTION OF WHAT I TEACH PEOPLE 4307 02:43:09,640 --> 02:43:11,160 ABOUT FASD. AND YOU CAN ONLY 4308 02:43:11,160 --> 02:43:13,160 TEACH SO MUCH WHEN PEOPLE DON'T 4309 02:43:13,160 --> 02:43:15,160 HAVE MUCH CONTACT WITH YOUR 4310 02:43:15,160 --> 02:43:17,960 DAUGHTER A FEW HOURS A WEEK. 4311 02:43:17,960 --> 02:43:20,160 >> I'M GOING TO ASK YOU TO STOP 4312 02:43:20,160 --> 02:43:21,200 THERE AND MOVE ON TO NICK. 4313 02:43:21,200 --> 02:43:22,320 >> I WAS READY TO STOP. THANK 4314 02:43:22,320 --> 02:43:25,120 YOU. CAN I SAY I WANT TO KNOW 4315 02:43:25,120 --> 02:43:28,560 WHAT IS GOING TO HAPPEN WHEN I 4316 02:43:28,560 --> 02:43:29,480 DIE. THAT'S A BURNING QUESTION. 4317 02:43:29,480 --> 02:43:32,080 >> THANK YOU. 4318 02:43:32,080 --> 02:43:32,560 >> NICK. 4319 02:43:32,560 --> 02:43:36,680 >> HELLO MY MAKE IS NICHOLAS I'M 4320 02:43:36,680 --> 02:43:38,480 19 YEARS OLD AND JUST LAST JUNE 4321 02:43:38,480 --> 02:43:41,440 I GRADUATED FROM HIGH SCHOOL. I 4322 02:43:41,440 --> 02:43:45,120 WAS DIAGNOSED WITH FASD IN EARLY 4323 02:43:45,120 --> 02:43:47,600 AGE, MY MOTHER HAD PASSED WHEN I 4324 02:43:47,600 --> 02:43:49,240 WAS ABOUT 4 YEARS OLD SO I WAS 4325 02:43:49,240 --> 02:43:52,240 LEFT TO BE WITH MY GRANDMOTHER. 4326 02:43:52,240 --> 02:43:54,480 AND AT THE TIME NOT MUCH WAS 4327 02:43:54,480 --> 02:43:56,600 KNOWN. SO WHEN I WAS DIAGNOSED 4328 02:43:56,600 --> 02:44:00,400 SHE DIDN'T REALLY KNOW WHAT FAS 4329 02:44:00,400 --> 02:44:02,960 WAS. SO SHE HAD GONE TO A DOCTOR 4330 02:44:02,960 --> 02:44:04,520 THAT ENDED UP DIAGNOSING ME WITH 4331 02:44:04,520 --> 02:44:06,400 IT AND THE DOCTOR TOLD HER THAT 4332 02:44:06,400 --> 02:44:08,880 YOU NEED TO LEARN AS MUCH ABOUT 4333 02:44:08,880 --> 02:44:13,680 THIS AS POSSIBLE. SO SHE DID 4334 02:44:13,680 --> 02:44:15,720 THAT AND SHE GOT INVOLVED IN 4335 02:44:15,720 --> 02:44:18,080 DIFFERENT GROUPS SUCH AS NO FAST 4336 02:44:18,080 --> 02:44:21,000 WHICH IS NATIONAL ORGANIZATION 4337 02:44:21,000 --> 02:44:23,680 ON FASD WHICH WE PARTICIPATED IN 4338 02:44:23,680 --> 02:44:25,600 DIFFERENT SPEAKING EVENTS ON 4339 02:44:25,600 --> 02:44:30,800 MULTIPLE OCCASIONS. SHE ALSO 4340 02:44:30,800 --> 02:44:31,800 ATTENDED DIFFERENT CONFERENCES 4341 02:44:31,800 --> 02:44:36,520 ABOUT IT AS WELL. SHE STARTED TO 4342 02:44:36,520 --> 02:44:41,480 HELP TEACH MY TEACHERS ABOUT THE 4343 02:44:41,480 --> 02:44:43,280 DISABILITY AND HOW THEY CAN COPE 4344 02:44:43,280 --> 02:44:45,480 WITH IT TO TRY AND HELP ME 4345 02:44:45,480 --> 02:44:48,280 SUCCEED IN THE LONG RUN. WHICH 4346 02:44:48,280 --> 02:44:49,800 SOME THINGS WORK, SOME DIDN'T, 4347 02:44:49,800 --> 02:44:55,640 IT IS ABOUT ADAPTING TO THE 4348 02:44:55,640 --> 02:44:56,760 SITUATION. BUT HOPEFULLY TODAY 4349 02:44:56,760 --> 02:44:58,680 WILL BE ABLE TO LIKE ADDRESS 4350 02:44:58,680 --> 02:45:02,520 SOME OF THE ISSUES THAT ARE 4351 02:45:02,520 --> 02:45:05,080 NEEDED BY KIDS AND ADULTS WITH 4352 02:45:05,080 --> 02:45:08,400 FAS THAT ARE NOT AVAILABLE TO 4353 02:45:08,400 --> 02:45:10,160 THEM AND HOW WE CAN HELP THEM 4354 02:45:10,160 --> 02:45:12,840 BECAUSE THERE IS A LOT OF STUFF 4355 02:45:12,840 --> 02:45:15,760 THAT WE NEED THAT A LOT OF 4356 02:45:15,760 --> 02:45:20,720 PEOPLE JUST DON'T UNDERSTAND. A 4357 02:45:20,720 --> 02:45:22,320 LOT IS LIKE KATE SAID, KIND OF 4358 02:45:22,320 --> 02:45:24,520 NEED THAT EXTERNAL BRAIN TO HELP 4359 02:45:24,520 --> 02:45:29,080 MOST OF THE TIME. YEAH, THAT'S 4360 02:45:29,080 --> 02:45:29,560 PRETTY MUCH IT. 4361 02:45:29,560 --> 02:45:33,920 >> OKAY. REBECCA. 4362 02:45:33,920 --> 02:45:36,840 >> HI, EVERYBODY. MY NAME IS 4363 02:45:36,840 --> 02:45:38,520 REBECCA TILLOU, I AM 43 YEARS 4364 02:45:38,520 --> 02:45:41,480 OLD. I WAS DIAGNOSED WITH FETAL 4365 02:45:41,480 --> 02:45:44,440 ALCOHOL SYNDROME AT 34 YEARS 4366 02:45:44,440 --> 02:45:47,240 OLD. IN ALBANY NEW YORK BY A 4367 02:45:47,240 --> 02:45:53,720 PEDIATRIC GENETICIST AT 34. AND 4368 02:45:53,720 --> 02:45:59,080 I THINGS THAT WORK FOR ME 4369 02:45:59,080 --> 02:46:01,280 ROUTINE, STRUCTURE, REPETITION. 4370 02:46:01,280 --> 02:46:04,360 I DO WORK FULL TIME, I HAVE A 9 4371 02:46:04,360 --> 02:46:07,160 TO 5 JOB, I HAVE HAD THE SAME 4372 02:46:07,160 --> 02:46:09,280 JOB FOR 16 YEARS NOW. WHY THAT 4373 02:46:09,280 --> 02:46:13,040 JOB WORKS FOR ME IS BECAUSE IT 4374 02:46:13,040 --> 02:46:15,600 IS THE SAME STROKES EVERY SINGLE 4375 02:46:15,600 --> 02:46:17,040 DAY, IT IS THE SAME COMPUTER 4376 02:46:17,040 --> 02:46:19,880 SYSTEM, IT'S THE SAME TYPING, IT 4377 02:46:19,880 --> 02:46:22,400 IS -- SO IT'S THAT REPETITION. 4378 02:46:22,400 --> 02:46:24,880 SO I KIND OF FELL INTO THE JOB 4379 02:46:24,880 --> 02:46:26,760 AS AN INSURANCE ADJUSTER 4380 02:46:26,760 --> 02:46:29,880 FOR MEDICAL CLAIMS -- ADJUSTOR 4381 02:46:29,880 --> 02:46:31,240 AND IT WORKS VERY WELL. I 4382 02:46:31,240 --> 02:46:33,600 DIDN'T HAVE SUPPORTS WHEN I WAS 4383 02:46:33,600 --> 02:46:36,080 YOUNGER. NOBODY KNEW THAT I HAD 4384 02:46:36,080 --> 02:46:38,600 FETAL ALCOHOL SYNDROME, IT WAS 4385 02:46:38,600 --> 02:46:40,480 SUSPECTED BY THE PEDIATRICIAN 4386 02:46:40,480 --> 02:46:43,120 BUT NEVER REALLY LOOKED INTO. 4387 02:46:43,120 --> 02:46:45,400 BECAUSE IT WAS BACK IN 1980. AND 4388 02:46:45,400 --> 02:46:47,480 WE DIDN'T KNOW ANYTHING ABOUT MY 4389 02:46:47,480 --> 02:46:50,840 BIRTH MOM. SO I DID FACIAL 4390 02:46:50,840 --> 02:46:59,680 FEATURES I STILL DO TODAY SUBTLY 4391 02:46:59,680 --> 02:47:01,720 SO THERE ARE SUPPORTS THAT I DO 4392 02:47:01,720 --> 02:47:07,840 USE TODAY, I USE MY HUSBAND HE IS MY 4393 02:47:07,840 --> 02:47:11,360 EXTERNAL BRAIN AND WE WORK AS A 4394 02:47:11,360 --> 02:47:14,120 TEAM. SO HE GETS THEM READY IN 4395 02:47:14,120 --> 02:47:18,000 THE MORNING HE DOES THE LUNCHES 4396 02:47:18,000 --> 02:47:22,000 TAKES ONE TO -- ONCE I TAKE TO 4397 02:47:22,000 --> 02:47:25,320 THE OTHER AND HE IS ALWAYS THERE 4398 02:47:25,320 --> 02:47:27,680 TO KIND OF BREAK UP THE CHAOS 4399 02:47:27,680 --> 02:47:29,720 THAT CAN HAPPEN WHEN YOU HAVE A 4400 02:47:29,720 --> 02:47:36,320 FAMILY OR JUST LIFE IN GENERAL. 4401 02:47:36,320 --> 02:47:39,120 I AM LEARNED AS I GOT OLDER 4402 02:47:39,120 --> 02:47:41,160 TAKEN A LONG TIME, I LEARNED NOT 4403 02:47:41,160 --> 02:47:42,960 TO OVERBOOK MYSELF AND I LEARNED 4404 02:47:42,960 --> 02:47:45,560 MY TRIGGERS SO I TRY TO KEEP A 4405 02:47:45,560 --> 02:47:47,920 SIMPLE LIFE AND IT DOES WORK FOR 4406 02:47:47,920 --> 02:47:50,240 OUR FAMILY SO THAT DOES HELP 4407 02:47:50,240 --> 02:47:54,680 LOTS OF VISUALS, AND THE ONLY 4408 02:47:54,680 --> 02:47:56,680 FORMAL SUPPORT I HAD AS A KID 4409 02:47:56,680 --> 02:47:58,840 WAS SPEECH THERAPY BUT IT WASN'T 4410 02:47:58,840 --> 02:48:00,680 FOR FAS, IT WAS BECAUSE I 4411 02:48:00,680 --> 02:48:03,680 COULDN'T ARTICULATE SOUNDS. 4412 02:48:03,680 --> 02:48:05,280 LOOKING BACK I HAD LANGUAGE 4413 02:48:05,280 --> 02:48:07,280 ISSUES ON CAUSE AND EFFECT IS 4414 02:48:07,280 --> 02:48:10,800 HARD FOR ME STILL TO COMPREHEND 4415 02:48:10,800 --> 02:48:13,760 AND IF I HAD BEEN DIAGNOSED I 4416 02:48:13,760 --> 02:48:14,520 PROBABLY WOULD HAVE BEEN ONE OF 4417 02:48:14,520 --> 02:48:20,520 THE OBJECTIVES. SO THERE IS HOPE 4418 02:48:20,520 --> 02:48:21,960 FOR US, SUPPORTS ARE ALWAYS 4419 02:48:21,960 --> 02:48:25,840 NEEDED. I THINK WITH EVERYBODY. 4420 02:48:25,840 --> 02:48:28,360 BUT I THINK IF YOU HAVE A CORE 4421 02:48:28,360 --> 02:48:30,560 FAMILY, A GOOD SUPPORT THERE, 4422 02:48:30,560 --> 02:48:34,680 AND IF YOU DO FIND A JOB AND YOU 4423 02:48:34,680 --> 02:48:37,080 KNOW LIKE MINE AND MY SUPERVISOR 4424 02:48:37,080 --> 02:48:40,480 KNOWS ABOUT MY DISABILITY, AND 4425 02:48:40,480 --> 02:48:42,800 WORKS WITH ME AND HAS BEEN THERE 4426 02:48:42,800 --> 02:48:45,080 THE WHOLE WAY. SHE IS AND 4427 02:48:45,080 --> 02:48:50,360 ADVOCATE. SO IT IS -- YEAH, THAT 4428 02:48:50,360 --> 02:48:53,680 IS IT. YOU DO HAVE A LITTLE WAYS 4429 02:48:53,680 --> 02:48:56,400 TO GO BUT WE ARE GETTING THERE. 4430 02:48:56,400 --> 02:49:04,480 THAT'S ALL I HAVE. 4431 02:49:04,480 --> 02:49:11,560 >> HELLO. MY NAME IS KAT 4432 02:49:11,560 --> 02:49:12,360 GRIFFIN, I'M 34-YEAR-OLD OLD, I 4433 02:49:12,360 --> 02:49:14,520 WAS DIAGNOSED WITH FULL FAS AS 4434 02:49:14,520 --> 02:49:16,600 AN INFANT. LIKE MOST ADULTS WITH 4435 02:49:16,600 --> 02:49:19,280 FASD THAT I KNOW AND I KNOW 4436 02:49:19,280 --> 02:49:21,520 MANY, ESPECIALLY BECAUSE I'M A 4437 02:49:21,520 --> 02:49:23,800 MEMBER OF THE INTERNATIONAL 4438 02:49:23,800 --> 02:49:25,560 ADULT LEADERSHIP COLLABORATIVE 4439 02:49:25,560 --> 02:49:28,560 MANY KNOWN AS THE ALC OF FAS 4440 02:49:28,560 --> 02:49:31,240 CHANGE MAKERS, I HAVE THINGS I 4441 02:49:31,240 --> 02:49:33,800 STRUGGLE DAILY WITH. BUT I 4442 02:49:33,800 --> 02:49:34,800 ACTUALLY HAVE MORE THINGS THAT 4443 02:49:34,800 --> 02:49:41,160 I'M GOOD AT. AS A -- I LEARNED 4444 02:49:41,160 --> 02:49:42,080 MORE WHAT THOSE STRENGTHS ARE 4445 02:49:42,080 --> 02:49:44,120 AND HOW TO MAKE THEM WORK FOR ME 4446 02:49:44,120 --> 02:49:47,320 AND WHAT I NEED FOR SUPPORTS. I 4447 02:49:47,320 --> 02:49:49,680 DON'T NEED YOU TO TEACH ME OVER 4448 02:49:49,680 --> 02:49:52,240 AGAIN HOW TO DO SOMETHING BUT I 4449 02:49:52,240 --> 02:49:55,240 DO NEED PEOPLE TO RECOGNIZE THAT 4450 02:49:55,240 --> 02:49:57,000 IN THE MOMENT I MIGHT NEED YOU 4451 02:49:57,000 --> 02:49:59,000 TO DO IT FOR ME. THAT'S 4452 02:49:59,000 --> 02:50:01,480 DEFINITELY SUPPORTIVE FOR ME. 4453 02:50:01,480 --> 02:50:04,360 I'M ELIGIBLE FOR ALL SERVICES 4454 02:50:04,360 --> 02:50:08,800 WHERE I LIVE IN BRITISH COLUMBIA 4455 02:50:08,800 --> 02:50:10,560 CANADA. I WAS SUBSIDIZED RENT IN 4456 02:50:10,560 --> 02:50:13,040 A BUILDING OWNED BY AGENCY THAT 4457 02:50:13,040 --> 02:50:15,320 PROVIDES SUPPORTS TO ADULTS WITH 4458 02:50:15,320 --> 02:50:16,880 DISABILITIES. SO I'M REALLY 4459 02:50:16,880 --> 02:50:18,880 LUCKY. I HAVE A DECENT PLACE TO 4460 02:50:18,880 --> 02:50:20,960 LIVE. I ALSO HAVE A ONE TO ONE 4461 02:50:20,960 --> 02:50:22,520 SUPPORT WORKER THAT I GET TO SEE 4462 02:50:22,520 --> 02:50:26,720 ONE DAY A WEEK. AND THIS IS 4463 02:50:26,720 --> 02:50:30,560 IMPORTANT, SHE TRULY UNDERSTANDS 4464 02:50:30,560 --> 02:50:32,960 FASD. AND WHAT I NEED TO BE 4465 02:50:32,960 --> 02:50:37,880 SUCCESSFUL. SHE DOES WHAT I 4466 02:50:37,880 --> 02:50:39,760 NEED HER TO DO, NOT WHAT SOMEONE 4467 02:50:39,760 --> 02:50:43,040 ELSE TELLS HER TO DO. I HAVE 4468 02:50:43,040 --> 02:50:45,000 BEEN EMPLOYED FOR MORE THAN FIVE 4469 02:50:45,000 --> 02:50:48,320 YEARS AS FASD MENTOR AND A FASD 4470 02:50:48,320 --> 02:50:54,680 DIAGNOSTIC CLINIC IN BRITISH 4471 02:50:54,680 --> 02:50:56,040 COLUMBIA. MENTORS ARE SOMETHING 4472 02:50:56,040 --> 02:50:57,360 WE HAVE AND IT IS A JOB THAT I 4473 02:50:57,360 --> 02:51:01,040 LOVE. I THINK IT IS IMPORTANT 4474 02:51:01,040 --> 02:51:03,160 FOR YOU TO KNOW AND UNDERSTAND 4475 02:51:03,160 --> 02:51:05,360 WHAT A DIFFERENCE MENTORING CAN 4476 02:51:05,360 --> 02:51:08,600 MAKE TO PEOPLE WITH FASD. I HAVE 4477 02:51:08,600 --> 02:51:11,160 MENTORING FOR YEARS. THAT 4478 02:51:11,160 --> 02:51:12,120 HELPED ME BECOME THE PERSON THAT 4479 02:51:12,120 --> 02:51:17,080 I AM TODAY. TEENS AN ADULTS 4480 02:51:17,080 --> 02:51:18,320 WITH FASD OFTEN LEARN BEST FROM 4481 02:51:18,320 --> 02:51:21,200 OTHERS WHO SHARE THEIR 4482 02:51:21,200 --> 02:51:22,720 EXPERIENCE AND TRULY UNDERSTAND 4483 02:51:22,720 --> 02:51:24,360 WHAT IT IS LIKE TO LIVE WITH A 4484 02:51:24,360 --> 02:51:27,760 DISABILITY SO FEW PEOPLE 4485 02:51:27,760 --> 02:51:32,160 UNDERSTAND OR RESPECT. I AND ALL 4486 02:51:32,160 --> 02:51:34,960 ADULTS WITH FASD AND BC RECEIVE 4487 02:51:34,960 --> 02:51:37,040 DISABILITY INCOME FINANCIAL 4488 02:51:37,040 --> 02:51:40,280 SUPPORT FROM THE GOVERNMENT AND 4489 02:51:40,280 --> 02:51:44,560 IN BC IT IS CALLED PWD, PERSONS 4490 02:51:44,560 --> 02:51:46,120 WITH DISABILITY. IT IS BASED ON 4491 02:51:46,120 --> 02:51:50,480 MY FASD DIAGNOSIS, NOT MY IQ. SO 4492 02:51:50,480 --> 02:51:55,480 IF YOU HAVE FASD IN BC YOU ARE 4493 02:51:55,480 --> 02:51:58,760 ELIGIBLE FOR PWD. BASED ON 4494 02:51:58,760 --> 02:52:03,920 DIAGNOSIS ALONE. WHICH IS GREAT 4495 02:52:03,920 --> 02:52:06,760 PEOPLE WITH FASD IN BC ARE ALSO 4496 02:52:06,760 --> 02:52:09,360 ALLOWED TO EARN $15,000 A YEAR 4497 02:52:09,360 --> 02:52:11,440 IN EMPLOYMENT IF YOU ARE 4498 02:52:11,440 --> 02:52:14,760 RECEIVING DISABILITY INCOME. 4499 02:52:14,760 --> 02:52:16,440 DISABILITY INCOME IS NOT CLAWED 4500 02:52:16,440 --> 02:52:18,200 BACK FROM UPWD BECAUSE YOU WERE 4501 02:52:18,200 --> 02:52:22,000 ABLE TO WORK PART TIME. YOU ARE 4502 02:52:22,000 --> 02:52:23,480 ENCOURAGED TO BE EMPLOYED MEMBER 4503 02:52:23,480 --> 02:52:24,480 OF SOCIETY TO THE BEST OF YOUR 4504 02:52:24,480 --> 02:52:28,880 ABILITY. AS WELL IN BC IF A 4505 02:52:28,880 --> 02:52:31,720 PERSON WITH FASD IS SPECIFICALLY 4506 02:52:31,720 --> 02:52:35,200 EMPLOYED AS A MENTOR, FOR AN 4507 02:52:35,200 --> 02:52:37,560 AGENCY THEN THE MONEY THEY 4508 02:52:37,560 --> 02:52:39,600 EARNED AS A MENTOR IS WHAT IS 4509 02:52:39,600 --> 02:52:41,960 CALLED EXEMPT INCOME. SO IT DOES 4510 02:52:41,960 --> 02:52:45,960 NOT HAVE TO BE DECLARED. AND ANY 4511 02:52:45,960 --> 02:52:49,360 OTHER INCOME THEY MIGHT EARN 4512 02:52:49,360 --> 02:52:51,680 WORKING, SAY LIKE IN A 4513 02:52:51,680 --> 02:52:54,760 RESTAURANT OR A STORE. EVEN 4514 02:52:54,760 --> 02:52:57,960 THOUGH I AM ELIGIBLE AND DO 4515 02:52:57,960 --> 02:53:00,440 RECEIVE SERVICES LIMITED AS THEY 4516 02:53:00,440 --> 02:53:03,240 ARE, I FIND THE MOST IMPORTANT 4517 02:53:03,240 --> 02:53:06,520 SUPPORTS FOR ME ARE PEOPLE AND 4518 02:53:06,520 --> 02:53:07,880 OPPORTUNITIES BOTH THAT COME 4519 02:53:07,880 --> 02:53:11,760 FROM FASD EXPERTISE. AND FASD 4520 02:53:11,760 --> 02:53:14,280 SPECIALIST, A DOCTOR, A NURSE 4521 02:53:14,280 --> 02:53:15,160 PRACTITIONER WHO IS ALWAYS 4522 02:53:15,160 --> 02:53:18,760 AVAILABLE. A MENTAL HEALTH 4523 02:53:18,760 --> 02:53:21,360 THERAPIST WHO IS HIGHLY 4524 02:53:21,360 --> 02:53:24,000 KNOWLEDGEABLE AND FASD AND 4525 02:53:24,000 --> 02:53:24,920 TRAUMA. SOMEONE I CAN CALL AT 4526 02:53:24,920 --> 02:53:28,760 ANY TIME OF THE DAY FOR HELP AND 4527 02:53:28,760 --> 02:53:31,240 ADVICE OR DIRECTION AND IT IS 4528 02:53:31,240 --> 02:53:32,440 OBVIOUSLY SOMEONE WHO IS NOT 4529 02:53:32,440 --> 02:53:35,080 GOING TO JUDGE ME. HAVING AND 4530 02:53:35,080 --> 02:53:37,920 ADVOCATE WHO DOESN'T TAKE NO FOR 4531 02:53:37,920 --> 02:53:41,080 AN ANSWER. KNOWS HOW TO NAVIGATE 4532 02:53:41,080 --> 02:53:42,480 IN SYSTEMS BECAUSE TRYING TO DO 4533 02:53:42,480 --> 02:53:44,640 THIS ON MY OWN IS ABSOLUTELY 4534 02:53:44,640 --> 02:53:50,160 IMPOSSIBLE. MY JOB. I LOVE MY 4535 02:53:50,160 --> 02:53:51,720 JOB, BUT I NEED A REASON TO GET 4536 02:53:51,720 --> 02:53:53,280 UP IN THE MORNING. I THINK WE 4537 02:53:53,280 --> 02:53:57,200 ALL DO IN A SENSE. THIS ALLOWS 4538 02:53:57,200 --> 02:54:01,520 ME TO USE MY SKILL SET THAT 4539 02:54:01,520 --> 02:54:03,240 HONESTLY ONLY THOSE WITH FASD 4540 02:54:03,240 --> 02:54:06,160 HAVE. I HAVE A JOB BASED ON MY 4541 02:54:06,160 --> 02:54:09,600 DISABILITY AND THAT IS AMAZING. 4542 02:54:09,600 --> 02:54:13,320 PEOPLE WITH FASD, THERE IS A 4543 02:54:13,320 --> 02:54:14,800 COMMONALITY EXPERIENCE THAT YOU 4544 02:54:14,800 --> 02:54:18,200 SIMPLY CANNOT REPLACE WITH 4545 02:54:18,200 --> 02:54:20,520 SOMETHING ELSE. THOSE ARE FASD, 4546 02:54:20,520 --> 02:54:24,000 WE GET EACH OTHER. IN A WAY VERY 4547 02:54:24,000 --> 02:54:27,560 FEW OTHERS DO. IT IS VERY RARE 4548 02:54:27,560 --> 02:54:29,240 BUT IT IS ALSO AMAZING. 4549 02:54:29,240 --> 02:54:31,040 SOMETHING THAT I THINK THAT IS 4550 02:54:31,040 --> 02:54:32,360 REALLY IMPORTANT AND WORKS WELL 4551 02:54:32,360 --> 02:54:35,560 FOR TEENS AN ADULTS WITH FASD IS 4552 02:54:35,560 --> 02:54:38,400 TO BE INVOLVED WITH OTHERS WITH 4553 02:54:38,400 --> 02:54:40,720 FASD. I HAVE HAD A LOT OF 4554 02:54:40,720 --> 02:54:43,640 EXPERIENCE WITH THAT IN B.C. 4555 02:54:43,640 --> 02:54:46,640 BECAUSE FOR MANY YEARS, UNTIL 4556 02:54:46,640 --> 02:54:48,320 COVID, SHUT EVERYTHING DOWN, WE 4557 02:54:48,320 --> 02:54:51,520 HAD A THREE DAY CONFERENCE EVERY 4558 02:54:51,520 --> 02:54:53,320 YEAR FOR TEENS AND ADULTS WITH 4559 02:54:53,320 --> 02:54:58,720 FASD AND IT WAS RUN THROUGH THE 4560 02:54:58,720 --> 02:55:00,080 UNIVERSITY OF BC, IT WAS 4561 02:55:00,080 --> 02:55:03,960 DESIGNED DEVELOPED AND ORGANIZED 4562 02:55:03,960 --> 02:55:11,840 AND RUN B BY THE ALC. I WANT YOU 4563 02:55:11,840 --> 02:55:14,240 TO HEAR AND UNDERSTAND THAT FASD 4564 02:55:14,240 --> 02:55:16,920 IS NOT LIVED EXPERIENCE BECAUSE 4565 02:55:16,920 --> 02:55:19,840 IT IS NOT PAST TENSE. WE ARE 4566 02:55:19,840 --> 02:55:23,920 LIVING WITH IT EVERY DAY. WE 4567 02:55:23,920 --> 02:55:25,840 WANT SYSTEMS TO SEE INVESTING IN 4568 02:55:25,840 --> 02:55:28,160 US MAKES GOOD SENSE AND WOULD 4569 02:55:28,160 --> 02:55:32,960 NOT BE HARD TO DO AT ALL. IT IS 4570 02:55:32,960 --> 02:55:34,400 MY OPINION AND THAT OF EVERYONE 4571 02:55:34,400 --> 02:55:39,680 I KNOW WHO HAS FASD, THAT ANY 4572 02:55:39,680 --> 02:55:43,320 KIND OF INTERVENTION IS ACTUALLY 4573 02:55:43,320 --> 02:55:51,080 PREVENTION. FROM. IF I CAN GIVE 4574 02:55:51,080 --> 02:55:52,680 YOU ONE MESSAGE TO THE ENTIRE 4575 02:55:52,680 --> 02:55:53,680 COMMUNITY IT WOULD BE TO CHANGE 4576 02:55:53,680 --> 02:55:54,800 HOW YOU THINK ABOUT PREVENTION. 4577 02:55:54,800 --> 02:55:56,200 THANK YOU SO MUCH. 4578 02:55:56,200 --> 02:56:01,080 >> THANKS, KAT. BEFORE ASKING 4579 02:56:01,080 --> 02:56:02,600 JUSTIN TO SPEAK NICK DO YOU WANT 4580 02:56:02,600 --> 02:56:04,640 TO TURN OFF YOUR CAMERA WHO WE 4581 02:56:04,640 --> 02:56:06,160 CAN JUST FOCUS ON WHO SPEAKING? 4582 02:56:06,160 --> 02:56:11,680 THANKS. JUSTIN. 4583 02:56:11,680 --> 02:56:17,440 >> THANKS, JAN. ON BEHALF OF ALC 4584 02:56:17,440 --> 02:56:20,160 FASD CHANGE MAKERS, THANK YOU 4585 02:56:20,160 --> 02:56:22,320 ICCFASD FOR GIVING US THIS 4586 02:56:22,320 --> 02:56:23,600 PLATFORM TODAY AND GETTING MORE 4587 02:56:23,600 --> 02:56:27,480 EYES AND EARS ON THIS INCREDIBLY 4588 02:56:27,480 --> 02:56:30,520 IMPORTANT TOPIC SO I WAS 40 4589 02:56:30,520 --> 02:56:35,440 YEARS OLD WHEN I RECEIVED MY 4590 02:56:35,440 --> 02:56:38,560 DIAGNOSIS AND I HAVE A DIAGNOSIS 4591 02:56:38,560 --> 02:56:43,960 OF ARND. I DISCOVERED IT MAKE A 4592 02:56:43,960 --> 02:56:47,120 FILM CALLED THE FASD PROJECT. I 4593 02:56:47,120 --> 02:56:47,920 WAS TRAVELING THE COUNTRY WILL 4594 02:56:47,920 --> 02:56:49,720 BEING TO ALL THESE INCREDIBLE 4595 02:56:49,720 --> 02:56:52,160 STORIES MEETING THESE INCREDIBLE 4596 02:56:52,160 --> 02:56:53,640 PEOPLE BUT I STARTED HEARING A 4597 02:56:53,640 --> 02:56:58,480 LOT OF MYSELF AND I HAVE BEEN 4598 02:56:58,480 --> 02:57:01,480 AROUND THE FASD COMMUNITY A LONG 4599 02:57:01,480 --> 02:57:04,400 TIME, FROM FAMILY HAVING 4600 02:57:04,400 --> 02:57:06,360 DIAGNOSIS OF IT TO MY WIFE WHO 4601 02:57:06,360 --> 02:57:10,640 IS A RESEARCHER IN THE 4602 02:57:10,640 --> 02:57:13,160 COMMUNITY. SO I HAD NEVER -- IT 4603 02:57:13,160 --> 02:57:14,840 NEVER OCCURRED TO ME UNTIL I 4604 02:57:14,840 --> 02:57:16,480 STARTED HEARING THESE STORIES 4605 02:57:16,480 --> 02:57:17,480 AND COMMONALITIES AND PARALLELS 4606 02:57:17,480 --> 02:57:22,040 TO MY OWN LIFE. AND SO I DECIDED 4607 02:57:22,040 --> 02:57:25,520 TO REACH OUT AND GET A DIAGNOSIS 4608 02:57:25,520 --> 02:57:28,880 MYSELF. I FILMED IT AND IT -- 4609 02:57:28,880 --> 02:57:32,560 HERE I AM TODAY A NEW MEMBER OF 4610 02:57:32,560 --> 02:57:34,880 THE ALC CHANGE MAKERS I'M 4611 02:57:34,880 --> 02:57:36,520 HONORED AND HUMBLED TO BE PART 4612 02:57:36,520 --> 02:57:39,000 OF. HAVING MADE A FILM ABOUT IT 4613 02:57:39,000 --> 02:57:41,760 AND LISTENING TO EVERYONE ACROSS 4614 02:57:41,760 --> 02:57:45,040 THE COUNTRY LIVING IN ALL WALKS 4615 02:57:45,040 --> 02:57:51,000 OF LIFE AND ALL DIFFERENT PLACES 4616 02:57:51,000 --> 02:57:53,800 IN AGE SOCIOECONOMIC STATUS WHAT 4617 02:57:53,800 --> 02:57:55,680 NOT. I THINK THE ONE THING THAT 4618 02:57:55,680 --> 02:57:58,680 STAND OUT TO ME IS THAT THIS IS 4619 02:57:58,680 --> 02:58:00,040 THE NEEDS ARE HIGHLY 4620 02:58:00,040 --> 02:58:01,800 INDIVIDUALIZED. THIS IS A 4621 02:58:01,800 --> 02:58:06,240 SPECTRAL DISORDER AND IT VARIES 4622 02:58:06,240 --> 02:58:09,680 GREATLY ACROSS THE SPECTRUM OF 4623 02:58:09,680 --> 02:58:13,440 WHAT PEOPLE NEED. I MYSELF VAN 4624 02:58:13,440 --> 02:58:17,520 ADULT DIAGNOSIS OF ADHD AS WELL. 4625 02:58:17,520 --> 02:58:18,960 AND HAVE HAD IT MY WHOLE LIFE, 4626 02:58:18,960 --> 02:58:20,400 AS A CHILD IT WAS VERY DIFFICULT 4627 02:58:20,400 --> 02:58:24,400 IN SCHOOL I DID OKAY. BUT I'M 4628 02:58:24,400 --> 02:58:26,280 AN 80s BABY SO THEY WEREN'T 4629 02:58:26,280 --> 02:58:28,480 REALLY DOING THAT DIAGNOSIS AS 4630 02:58:28,480 --> 02:58:33,120 MUCH BACK THEN. SO I DIDN'T HAVE 4631 02:58:33,120 --> 02:58:36,360 AN IEP OR ANYTHING LIKE THAT. SO 4632 02:58:36,360 --> 02:58:40,200 I HAD TO WORK EXTRA HARD JUST TO 4633 02:58:40,200 --> 02:58:42,880 BE AVERAGE AT SCHOOL. I THINK 4634 02:58:42,880 --> 02:58:44,120 THAT LEADS TO LIKE WHAT IS 4635 02:58:44,120 --> 02:58:45,920 WORKING FOR ME NOW THAT I'M -- 4636 02:58:45,920 --> 02:58:47,720 I'M STILL PROCESSING MY 4637 02:58:47,720 --> 02:58:50,960 DIAGNOSIS, I'M 42 NOW, IT'S BEEN 4638 02:58:50,960 --> 02:58:52,600 A YEAR AND A HALF, A LITTLE 4639 02:58:52,600 --> 02:58:58,680 MORE, SINCE I RECEIVED IT. BUT I 4640 02:58:58,680 --> 02:59:01,400 DO KNOW THAT RECEIVING THIS 4641 02:59:01,400 --> 02:59:03,960 DIAGNOSIS I FIND HIGHLY VALUABLE 4642 02:59:03,960 --> 02:59:05,440 BEING ABLE TO BE PRIVILEGED 4643 02:59:05,440 --> 02:59:07,960 ENOUGH TO AFFORD TO GET A 4644 02:59:07,960 --> 02:59:09,880 DIAGNOSIS WHICH IS NOT 4645 02:59:09,880 --> 02:59:11,480 ACCESSIBLE AND BEING ABLE TO 4646 02:59:11,480 --> 02:59:12,840 HAVE THE WHEREWITHAL TO KNOW 4647 02:59:12,840 --> 02:59:15,320 THAT HEY, IS THIS A POSSIBILITY 4648 02:59:15,320 --> 02:59:18,440 FOR ME? A LOT OF PEOPLE DON'T 4649 02:59:18,440 --> 02:59:20,920 KNOW. 9 OUT OF 10 PEOPLE LIVING 4650 02:59:20,920 --> 02:59:23,840 WITH FASD DON'T HAVE FACIAL 4651 02:59:23,840 --> 02:59:25,800 DYSMORPHOLOGY, THEY HAVE A 4652 02:59:25,800 --> 02:59:27,160 COLLECTION OF MAYBE OTHER 4653 02:59:27,160 --> 02:59:31,800 SYMPTOMS DIAGNOSED BY CORE 2, I 4654 02:59:31,800 --> 02:59:33,680 HAVE ADHD, I HAVE PUBLICLY HAVE 4655 02:59:33,680 --> 02:59:38,840 ODD, IT IS NOT DIAGNOSED BUT 4656 02:59:38,840 --> 02:59:41,280 I'VE HAD TROUBLE WITH AUTHORITY 4657 02:59:41,280 --> 02:59:43,640 AND BEEN TO JAIL A FEW TIMES 4658 02:59:43,640 --> 02:59:44,800 WHICH WAS ANOTHER THING THAT I 4659 02:59:44,800 --> 02:59:46,600 THOUGHT WAS COMMON JUST AMONG 4660 02:59:46,600 --> 02:59:47,960 EVERYBODY BUT KIND OF LEARNED 4661 02:59:47,960 --> 02:59:50,520 THAT THAT'S UNIQUE EXPERIENCE 4662 02:59:50,520 --> 02:59:54,120 UNTO MYSELF. SO WHAT I HAVE 4663 02:59:54,120 --> 02:59:58,960 REALLY LEARNED IS THAT MY WIFE 4664 02:59:58,960 --> 03:00:01,720 IS MY EXTERNAL BRAIN IN A LOT OF 4665 03:00:01,720 --> 03:00:06,200 WAITES. I NEED MY FASD LOOKS A 4666 03:00:06,200 --> 03:00:08,160 LOT LIKE A LITANY OF DIFFERENT 4667 03:00:08,160 --> 03:00:12,760 HEALTH PROBLEMS SO I HAVE -- I 4668 03:00:12,760 --> 03:00:15,480 JUST RECEIVED OPEN HEART SURGERY 4669 03:00:15,480 --> 03:00:17,920 FOR AN OUT KAPPA IN DECEMBER AND 4670 03:00:17,920 --> 03:00:20,160 SO THAT IS A CONGENITAL HEART 4671 03:00:20,160 --> 03:00:23,360 DISEASE, THERE IS NO RESEARCH 4672 03:00:23,360 --> 03:00:25,160 BACKING UP THAT IT IS RELATED TO 4673 03:00:25,160 --> 03:00:30,040 ALCOHOL EXPOSURE. FOR A LONG 4674 03:00:30,040 --> 03:00:31,960 TIME I WALK INTO A DOCTOR'S 4675 03:00:31,960 --> 03:00:34,080 OFFICE AND WITHOUT MY DIAGNOSIS 4676 03:00:34,080 --> 03:00:37,960 I LOOK LIKE AN AVERAGE HEALTHY 4677 03:00:37,960 --> 03:00:40,320 PERSON THAT SO I GET DISMISSED A 4678 03:00:40,320 --> 03:00:42,560 LOT AND MY PROBLEMS AREN'T 4679 03:00:42,560 --> 03:00:44,520 HEARD. I HAVE DIVERTICULITIS 4680 03:00:44,520 --> 03:00:46,720 THAT AFFECTS MY DIET AND HAS 4681 03:00:46,720 --> 03:00:47,560 ENDED ME IN THE HOSPITAL AS 4682 03:00:47,560 --> 03:00:50,360 WELL. I HAVE A MULTITUDE OF 4683 03:00:50,360 --> 03:00:53,680 DIFFERENT MENTAL HEALTH ISSUES 4684 03:00:53,680 --> 03:00:57,800 SO I NEED DOCTORS TO LISTEN AND 4685 03:00:57,800 --> 03:01:00,240 BE AWARE. SO THE WAY THAT THINGS 4686 03:01:00,240 --> 03:01:01,880 THAT HELP ARE HAVING SUPPORT 4687 03:01:01,880 --> 03:01:03,680 SYSTEM LIKE MY WIFE WHO GOES IN 4688 03:01:03,680 --> 03:01:06,120 AND ADVOCATE FOR ME, THAT WHEN I 4689 03:01:06,120 --> 03:01:08,800 SAY HEY MY HEART IS HURTING OR 4690 03:01:08,800 --> 03:01:10,680 I'M HAVING PAIN IN MY LOWER LEFT 4691 03:01:10,680 --> 03:01:12,040 SIDE THAT I'M NOT JUST DISMISSED 4692 03:01:12,040 --> 03:01:16,560 AS A NORMAL HEALTHY LOOKING 4693 03:01:16,560 --> 03:01:18,160 PERSON AND BOOTED OUT THE 4694 03:01:18,160 --> 03:01:22,480 DOCTOR'S OFFICE. SO GETTING 4695 03:01:22,480 --> 03:01:23,800 PEOPLE TO UNDERSTAND DOCTORS, 4696 03:01:23,800 --> 03:01:25,880 MEMBER TALL HEALTH 4697 03:01:25,880 --> 03:01:28,320 PROFESSIONALS. GETTING AWARENESS 4698 03:01:28,320 --> 03:01:29,920 OUT THERE AMONG THOSE IN 4699 03:01:29,920 --> 03:01:31,560 EDUCATION, SO THAT THE COMMUNITY 4700 03:01:31,560 --> 03:01:34,280 ITSELF HAS TO -- DOESN'T HAVE TO 4701 03:01:34,280 --> 03:01:36,720 CONTINUOUSLY TIRELESSLY EDUCATE 4702 03:01:36,720 --> 03:01:38,040 EVERY DOCTOR THEY WALK INTO, 4703 03:01:38,040 --> 03:01:39,640 EVERY MENTAL HEALTH PROFESSIONAL 4704 03:01:39,640 --> 03:01:45,160 THEY WALK INTO. IT IS COMMUNITY 4705 03:01:45,160 --> 03:01:47,360 NEEDS THIS THE MOST. SO HAVING 4706 03:01:47,360 --> 03:01:49,360 THAT SCAFFOLDING SUPPORT SYSTEM 4707 03:01:49,360 --> 03:01:52,600 I WORK FOR MYSELF, KIND OF 4708 03:01:52,600 --> 03:01:55,240 BECAUSE I HAVE TO. I DON'T WORK 4709 03:01:55,240 --> 03:01:56,880 WELL UNDER OTHERS SO I WORK FOR 4710 03:01:56,880 --> 03:01:58,680 MYSELF, I'M A CONTRACTOR I'M A 4711 03:01:58,680 --> 03:02:00,480 FILM MAKER I WEAR MANY DIFFERENT 4712 03:02:00,480 --> 03:02:04,440 HATS. AND TO PIGGY BACK ON WHAT 4713 03:02:04,440 --> 03:02:06,880 KAT SAID IS YOU KNOW, A LOT OF 4714 03:02:06,880 --> 03:02:10,120 WAYS I HAVE MY BRAIN HAS ITS 4715 03:02:10,120 --> 03:02:12,240 DISABILITIES AND BUT I ALSO HAVE 4716 03:02:12,240 --> 03:02:13,800 WHAT I FEEL LIKE ARE SUPERPOWERS 4717 03:02:13,800 --> 03:02:15,440 AND ABILITY TO PERSEVERE AND 4718 03:02:15,440 --> 03:02:17,640 PUSH THROUGH AND SOLVE PROBLEMS, 4719 03:02:17,640 --> 03:02:20,800 I WON'T STOP UNTIL I SOLVE THIS 4720 03:02:20,800 --> 03:02:24,000 PARTICULAR PROBLEM, RIGHT? SO I 4721 03:02:24,000 --> 03:02:25,840 THINK THAT THAT -- THERE IS A 4722 03:02:25,840 --> 03:02:27,760 PLACE AND IS A WAY WITH ENOUGH 4723 03:02:27,760 --> 03:02:30,560 SUPPORT SYSTEMS IN PLACE, TO 4724 03:02:30,560 --> 03:02:32,480 HELP INDIVIDUALS LIVING WITH 4725 03:02:32,480 --> 03:02:34,480 FASD REALLY GO FROM THAT SURVIVE 4726 03:02:34,480 --> 03:02:38,120 MODE TO THAT THRIVE MODE. AS 4727 03:02:38,120 --> 03:02:39,520 CHRISTIE WAS SAYING IN HER 4728 03:02:39,520 --> 03:02:40,920 PRESENTATION. WE WANT TO MOVE 4729 03:02:40,920 --> 03:02:46,360 FROM JUST SURVIVING TO THRIVING. 4730 03:02:46,360 --> 03:02:49,960 AND IT IS -- AND MANAGE OUR OWN 4731 03:02:49,960 --> 03:02:52,840 SUCCESSES AND THINGS LIKE THAT 4732 03:02:52,840 --> 03:02:54,840 WITH HELP OF THOSE AROUND US. 4733 03:02:54,840 --> 03:02:58,200 REACH UP TO THAT NEXT LEVEL. SO 4734 03:02:58,200 --> 03:02:59,960 SOMETHING I WANTED TO ECHO AS 4735 03:02:59,960 --> 03:03:01,840 WELL THAT KAT MENTIONED THAT IS 4736 03:03:01,840 --> 03:03:03,160 HAPPENING IN CANADA THAT THE 4737 03:03:03,160 --> 03:03:05,920 U.S. REALLY COULD USE IS A, WE 4738 03:03:05,920 --> 03:03:10,280 NEED TO GET THE FASD RESPECT ACT 4739 03:03:10,280 --> 03:03:12,600 PUSHED THROUGH. B., WE NEED ALL 4740 03:03:12,600 --> 03:03:13,720 SORTS OF DIFFERENT KINDS OF 4741 03:03:13,720 --> 03:03:15,040 SUPPORT, OF COURSE WE HAVE THAT 4742 03:03:15,040 --> 03:03:18,040 OF OUR FAMILY AND FRIENDS AND 4743 03:03:18,040 --> 03:03:21,120 PEERS, BUT WE NEED GOVERNMENT, 4744 03:03:21,120 --> 03:03:23,600 STATE, AND LOCAL COMMUNITY 4745 03:03:23,600 --> 03:03:25,800 SUPPORT AS WEL WELL. I FEEL THAT 4746 03:03:25,800 --> 03:03:29,600 THAT HAPPENS THROUGH AWARENESS. 4747 03:03:29,600 --> 03:03:31,600 AND ALSO FINANCIAL SUPPORT WOULD 4748 03:03:31,600 --> 03:03:33,160 BE GREAT FOR INDIVIDUALS LIVING 4749 03:03:33,160 --> 03:03:35,040 WITH THIS, YOU WOULD ADDRESS A 4750 03:03:35,040 --> 03:03:38,240 LOT OF PROBLEMS BY WITH MEDICAL 4751 03:03:38,240 --> 03:03:40,120 DEBT RELIEF, MENTAL HEALTH 4752 03:03:40,120 --> 03:03:44,760 ACCESS TO MENTAL HEALTH AND 4753 03:03:44,760 --> 03:03:46,960 DOCTORS AND SUCH. SO THAT 4754 03:03:46,960 --> 03:03:48,920 UNDERSTAND THIS DISABILITY SO 4755 03:03:48,920 --> 03:03:51,680 THEY CAN KNOW IT IS CO-MORBID 4756 03:03:51,680 --> 03:03:53,680 WITH OVER 400 DIFFERENT OTHER 4757 03:03:53,680 --> 03:03:56,160 DIAGNOSES, WHICH IS AN IMPORTANT 4758 03:03:56,160 --> 03:03:57,680 THING TO UNDERSTAND PHYSICALLY 4759 03:03:57,680 --> 03:04:02,440 AND MENTALLY FOR THIS COMMUNITY. 4760 03:04:02,440 --> 03:04:04,440 SO WE NEED I THINK I'M GOING TO 4761 03:04:04,440 --> 03:04:07,560 END ON THIS, WE NEED ACTION. I 4762 03:04:07,560 --> 03:04:09,280 THINK EVERYBODY ON THIS PANEL 4763 03:04:09,280 --> 03:04:11,680 WOULD AGREE ALL OF US CAN SIT 4764 03:04:11,680 --> 03:04:15,520 AROUND AND HAVE MANY PEOPLE HAVE 4765 03:04:15,520 --> 03:04:16,760 4 YEARS SITTING AROUND TALKING 4766 03:04:16,760 --> 03:04:18,080 ABOUT WHAT WE NEED. FROM MY 4767 03:04:18,080 --> 03:04:20,200 PERSONAL STANDPOINT WHAT WE NEED 4768 03:04:20,200 --> 03:04:22,960 IS ACTION, WE NEED REAL ACTION 4769 03:04:22,960 --> 03:04:24,840 TO PUSH FORWARD. WE NEED 4770 03:04:24,840 --> 03:04:28,360 RESULTS, WE NEED TO PUSH 4771 03:04:28,360 --> 03:04:29,200 SOMETHING FORWARD THAT GOES 4772 03:04:29,200 --> 03:04:31,720 THROUGH, GETS THINGS GOING AND 4773 03:04:31,720 --> 03:04:32,960 THERE WE CAN SHAPE AN FORM TO 4774 03:04:32,960 --> 03:04:34,400 WHAT COMMUNITY NEEDS AND 4775 03:04:34,400 --> 03:04:35,280 INDIVIDUALS LIVING WITH THIS 4776 03:04:35,280 --> 03:04:36,920 NEED. IT IS TIME TO PUSH 4777 03:04:36,920 --> 03:04:39,520 FORWARD AND NOT JUST TALK ABOUT 4778 03:04:39,520 --> 03:04:40,520 WHAT WE NEED BUT PUT INTO 4779 03:04:40,520 --> 03:04:46,400 ACTION. THAT IS MY TIME, THANK 4780 03:04:46,400 --> 03:04:47,960 YOU FOR HAVING ME. APPRECIATE 4781 03:04:47,960 --> 03:04:48,800 IT. 4782 03:04:48,800 --> 03:04:49,920 >> THANKS, JUSTIN. KATHY 4783 03:04:49,920 --> 03:04:54,160 MITCHELL. 4784 03:04:54,160 --> 03:04:57,360 >> GOOD AFTERNOON, EVERYBODY. 4785 03:04:57,360 --> 03:04:58,960 WOW, WHAT A PANEL, THANK YOU SO 4786 03:04:58,960 --> 03:05:04,400 MUCH FOR INVITING ME. I'M 4787 03:05:04,400 --> 03:05:05,600 ABSOLUTELY HUMBLED TO BE PART OF 4788 03:05:05,600 --> 03:05:07,080 THIS. SO I KNOW MANY OF YOU, IT 4789 03:05:07,080 --> 03:05:10,880 IS REALLY GOOD TO SEE SO MANY 4790 03:05:10,880 --> 03:05:13,240 FRIENDS HERE TODAY AND TATIANA, 4791 03:05:13,240 --> 03:05:15,480 GREAT JOB PUTTING ALL THIS 4792 03:05:15,480 --> 03:05:20,400 TOGETHER. SO I HAVE BEEN 4793 03:05:20,400 --> 03:05:21,840 INVOLVED IN WORKING IN THE FIELD 4794 03:05:21,840 --> 03:05:25,320 OF FASD SINCE THE '80s WHEN MY 4795 03:05:25,320 --> 03:05:27,920 THEN 15-YEAR-OLD DAUGHTER WAS 4796 03:05:27,920 --> 03:05:30,600 DIAGNOSED WITH FAS. SHE HAD BEEN 4797 03:05:30,600 --> 03:05:32,080 MISDIAGNOSED FOR MANY YEARS. I 4798 03:05:32,080 --> 03:05:35,920 AM A WOMAN ALSO IN LONG TERM 4799 03:05:35,920 --> 03:05:38,800 RECOVERY FROM ALCOHOLISM AND 4800 03:05:38,800 --> 03:05:41,320 DRUG ADDICTION. COMING UP ON 39 4801 03:05:41,320 --> 03:05:44,840 YEARS.MENT SO WHEN MY DAUGHTER 4802 03:05:44,840 --> 03:05:47,880 WAS DIAGNOSED IN THE '80s, I 4803 03:05:47,880 --> 03:05:51,840 WANTED TO TELL EVERYBODY THAT I 4804 03:05:51,840 --> 03:05:55,160 KNEW BECAUSE I KNEW SO MANY 4805 03:05:55,160 --> 03:05:58,880 PEOPLE IN MY EXPERIENCE BEING A 4806 03:05:58,880 --> 03:06:02,960 WOMAN IN -- AT THAT POINT SHORT 4807 03:06:02,960 --> 03:06:05,880 TERM RECOVERY THAT DID NOT KNOW 4808 03:06:05,880 --> 03:06:10,520 THAT DRINKING COULD CAUSE 4809 03:06:10,520 --> 03:06:13,600 PERMANENT DAMAGE TO THEIR 4810 03:06:13,600 --> 03:06:16,160 DEVELOPING UNBORN BABY. SO I GOT 4811 03:06:16,160 --> 03:06:20,840 BUSY AND I JUST STARTED TALKING 4812 03:06:20,840 --> 03:06:22,280 ABOUT THIS AND TALKING TO 4813 03:06:22,280 --> 03:06:27,880 CONGRESS AND GOT INVOLVED WITH 4814 03:06:27,880 --> 03:06:30,760 NOFAS BACK THEN WHICH IS FASD 4815 03:06:30,760 --> 03:06:32,160 UNITED AND END UNDERSTOOD A 4816 03:06:32,160 --> 03:06:32,800 BOARD MEMBER FOR THEM AND 4817 03:06:32,800 --> 03:06:34,160 VOLUNTEER AND SPEAKING ALL OVER 4818 03:06:34,160 --> 03:06:35,920 PLACE AND LATER WORKED WITH THEM 4819 03:06:35,920 --> 03:06:41,240 FOR YEARS. I AM A PERSON WHO HAS 4820 03:06:41,240 --> 03:06:43,880 BEEN VERY INVOLVED AND TATIANA 4821 03:06:43,880 --> 03:06:45,840 ASKED ME TO SPEAK TODAY JUST TO 4822 03:06:45,840 --> 03:06:50,240 GIVE THE PERSPECTIVE THAT IS 4823 03:06:50,240 --> 03:06:52,840 UNIQUE, WORKING WITH BIRTH 4824 03:06:52,840 --> 03:06:54,240 FAMILIES. I WORK WITH A LOT OF 4825 03:06:54,240 --> 03:06:57,480 YOUNG MOTHERS AND FATHERS THAT 4826 03:06:57,480 --> 03:07:00,920 ARE STRUGGLING. THAT ARE JUST 4827 03:07:00,920 --> 03:07:03,720 COMING TO GRIPS WITH THIS THING 4828 03:07:03,720 --> 03:07:05,520 CALLED FASD AND REALLY NOT 4829 03:07:05,520 --> 03:07:06,720 UNDERSTANDING WHAT IT IS, WHERE 4830 03:07:06,720 --> 03:07:09,280 TO FIND A DIAGNOSIS, HOW TO DEAL 4831 03:07:09,280 --> 03:07:11,840 WITH GETTING THE DIAGNOSIS. SO 4832 03:07:11,840 --> 03:07:15,480 JUST GOING TO RATTLE ON SOME OF 4833 03:07:15,480 --> 03:07:19,000 THOSE UNIQUE PERSPECTIVES AND 4834 03:07:19,000 --> 03:07:20,280 SPECIAL NEEDS MAYBE NOT ALL 4835 03:07:20,280 --> 03:07:22,600 FAMILIES WOULD HAVE. AND JUST TO 4836 03:07:22,600 --> 03:07:26,640 BACK UP, I WILL TELL YOU THAT MY 4837 03:07:26,640 --> 03:07:28,760 DAUGHTER CARLY SHE IS SEVERELY 4838 03:07:28,760 --> 03:07:32,080 AFFECTED. SHE IS NOW 50 YEARS 4839 03:07:32,080 --> 03:07:34,600 OLD, SHE LIVES IN A GROUP HOME, 4840 03:07:34,600 --> 03:07:36,160 SHE HAS FOR FOUR YEARS SO SHE 4841 03:07:36,160 --> 03:07:38,920 GETS ALL THE SERVICES THAT 4842 03:07:38,920 --> 03:07:41,720 ANYONE -- SHE IS A PERSON WITH 4843 03:07:41,720 --> 03:07:42,960 INTELLECTUAL DISABILITIES. AND 4844 03:07:42,960 --> 03:07:46,920 OF COURSE NONE OF THOSE SERVE AS 4845 03:07:46,920 --> 03:07:48,800 PROVIDERS -- SERVICE PROVIDERS 4846 03:07:48,800 --> 03:07:50,640 EVER KNOW WHAT FAS OR WHAT FASD 4847 03:07:50,640 --> 03:07:53,320 IS. SO IS THAT STILL GOES ON.LY 4848 03:07:53,320 --> 03:07:54,960 ALSO TELL YOU AND I THINK THIS 4849 03:07:54,960 --> 03:07:56,640 IS AN IMPORTANT PIECE BECAUSE WE 4850 03:07:56,640 --> 03:07:58,080 DON'T TYPICALLY TALK ABOUT THIS 4851 03:07:58,080 --> 03:08:00,080 WHEN WE TALK ABOUT FASDs AND 4852 03:08:00,080 --> 03:08:02,840 HOW IT AFFECTS FAMILIES AND 4853 03:08:02,840 --> 03:08:04,760 SERVICES NEEDED. BUT I HAD TWO 4854 03:08:04,760 --> 03:08:06,640 CHILDREN THAT DIED IN INFANCY. 4855 03:08:06,640 --> 03:08:08,760 ONE AT THREE MONTHS FROM SUDDEN 4856 03:08:08,760 --> 03:08:10,760 INFANT DEATH SYNDROME AND ONE 4857 03:08:10,760 --> 03:08:12,400 RIGHT AFTER BIRTH. I BELIEVE 4858 03:08:12,400 --> 03:08:14,760 BOTH OF THOSE CHILDREN DIED 4859 03:08:14,760 --> 03:08:16,520 BECAUSE I WASN'T GIVEN THE 4860 03:08:16,520 --> 03:08:17,520 OPPORTUNITY OF TREATMENT AND 4861 03:08:17,520 --> 03:08:19,680 THEY WERE SUBSTANCE EXPOSED. SO 4862 03:08:19,680 --> 03:08:22,120 I THINK THAT IS ANOTHER 4863 03:08:22,120 --> 03:08:23,440 IMPORTANT KIND OF PIECE. THE 4864 03:08:23,440 --> 03:08:29,200 UNIQUE PERSPECTIVE OF WOMEN AND 4865 03:08:29,200 --> 03:08:30,640 FAMILIES BIRTH FAMILIES THERE IS 4866 03:08:30,640 --> 03:08:34,640 A LOT OF GUILT, REMORSE AND 4867 03:08:34,640 --> 03:08:36,760 SHAME. THERE IS STIGMA NOT ONLY 4868 03:08:36,760 --> 03:08:40,080 STIGMA THAT COMES FROM THE 4869 03:08:40,080 --> 03:08:41,720 COMMUNITY FROM HEALTHCARE 4870 03:08:41,720 --> 03:08:44,280 PROVIDERS BUT THERE IS ALSO 4871 03:08:44,280 --> 03:08:46,480 SELF-STILING MA, THERE IS A LOT 4872 03:08:46,480 --> 03:08:48,880 OF DISDAIN OVERALL WHICH HAS 4873 03:08:48,880 --> 03:08:50,880 BEEN RESEARCHED AND WE CLEARLY 4874 03:08:50,880 --> 03:08:54,360 UNDERSTAND THAT THIS IS AN ISSUE 4875 03:08:54,360 --> 03:08:56,560 THAT KIND OF THE KNEE JERK 4876 03:08:56,560 --> 03:08:58,440 RESPONSE IS YOU DID THIS. HOW 4877 03:08:58,440 --> 03:09:00,000 CAN YOU COMPLAIN? HOW CAN YOU 4878 03:09:00,000 --> 03:09:01,720 ASK FOR ANYTHING? YOU DESERVE 4879 03:09:01,720 --> 03:09:03,200 NOTHING. YOU DID THIS TO YOUR 4880 03:09:03,200 --> 03:09:08,840 OWN CHILD. AND SO DEALING WITH 4881 03:09:08,840 --> 03:09:15,320 THAT. ANOTHER HAPPENING IN BIRTH 4882 03:09:15,320 --> 03:09:17,320 FAMILIES IS A LOSS OF FAMILY. 4883 03:09:17,320 --> 03:09:18,600 MOST FAMILIES THE PARENTS THAT I 4884 03:09:18,600 --> 03:09:20,120 DEAL WITH AND HAVE DEALT WITH 4885 03:09:20,120 --> 03:09:21,960 FOR OVER THE YEARS, DO HAVE 4886 03:09:21,960 --> 03:09:24,920 SUBSTANCE USE DISORDERS OR AN 4887 03:09:24,920 --> 03:09:26,240 ALCOHOL USE DISORDER, NOT ALL 4888 03:09:26,240 --> 03:09:29,000 BUT IT IS PRETTY RARE, I HAVE 4889 03:09:29,000 --> 03:09:34,800 GOT A FEW BUT MOSTLY THEY HAVE 4890 03:09:34,800 --> 03:09:36,200 ALL DEALT WITH ADDICTION. IN AND 4891 03:09:36,200 --> 03:09:37,360 OUT OF RECOVERY AND TREATMENT 4892 03:09:37,360 --> 03:09:38,640 CENTERS AND THAT SORT OF THING 4893 03:09:38,640 --> 03:09:41,080 BUT THERE IS A LOT OF ISOLATION 4894 03:09:41,080 --> 03:09:44,080 AND FEAR AND EMBARRASSMENT. AND 4895 03:09:44,080 --> 03:09:45,440 SHAME OVER TELLING A SYSTEM OF 4896 03:09:45,440 --> 03:09:48,280 CARE THAT OH, THE TRUE DIAGNOSIS 4897 03:09:48,280 --> 03:09:53,000 IS FASD. THE OTHER PIECE IS OUR 4898 03:09:53,000 --> 03:09:55,000 FAMILIES ARE NOT GETTING 4899 03:09:55,000 --> 03:09:58,160 DIAGNOSES. I STARTED A GROUP IN 4900 03:09:58,160 --> 03:10:01,320 2020, THE RECOVERY MOTHERS 4901 03:10:01,320 --> 03:10:03,840 ANONYMOUS OR MA, THAT ANYONE CAN 4902 03:10:03,840 --> 03:10:06,920 ACCESS, IT IS FREE ON ZOOM, 4903 03:10:06,920 --> 03:10:08,240 EVERY THURSDAY AT 7 P.M. EASTERN 4904 03:10:08,240 --> 03:10:11,760 TIME. IT'S BEEN WILDLY 4905 03:10:11,760 --> 03:10:13,280 SUCCESSFUL BUT A LARGE MAJORITY 4906 03:10:13,280 --> 03:10:16,080 OF OUR YOUNGER MOMS ARE WOMEN 4907 03:10:16,080 --> 03:10:19,280 WHO HAS BEEN ON MEDICATION 4908 03:10:19,280 --> 03:10:20,640 ASSISTED TREATMENT OR DEALT WITH 4909 03:10:20,640 --> 03:10:22,640 SUBSTANCE USE DISORDERS AND 4910 03:10:22,640 --> 03:10:25,960 PHYSICIANS HAVE FOCUSED ON THEIR 4911 03:10:25,960 --> 03:10:27,920 OTHER SUBSTANCE USE. THERE WAS 4912 03:10:27,920 --> 03:10:29,160 PLENTY OF ALCOHOL USE AND I CAN 4913 03:10:29,160 --> 03:10:30,760 CLEARLY SEE BECAUSE I GET TO 4914 03:10:30,760 --> 03:10:32,400 MEET THE KIDS ON ZOOM THAT PICK 4915 03:10:32,400 --> 03:10:34,760 THEM UP, THEY ARE ADORABLE BUT 4916 03:10:34,760 --> 03:10:36,840 FOR A LOT OF CHILDREN, CLEARLY 4917 03:10:36,840 --> 03:10:39,000 THEY HAVE THE FACIAL FEATURES 4918 03:10:39,000 --> 03:10:43,160 ASSOCIATED WITH FAS. SO NOBODY 4919 03:10:43,160 --> 03:10:44,200 IS ASKING THEM THOSE QUESTIONS, 4920 03:10:44,200 --> 03:10:46,200 THEY ARE ACTUALLY FINDING OUT 4921 03:10:46,200 --> 03:10:48,520 ABOUT FASDs FROM THE OLDER 4922 03:10:48,520 --> 03:10:52,600 MOMS LIKE MYSELF. BUT I WILL 4923 03:10:52,600 --> 03:10:54,280 CLOSE WITH JUST SAYING 4924 03:10:54,280 --> 03:10:56,280 EVERYTHING FROM TRANSPORTATION, 4925 03:10:56,280 --> 03:11:01,880 TO COMPUTERS TO SAFE 4926 03:11:01,880 --> 03:11:04,640 ENVIRONMENT, MANY LIVE IN 4927 03:11:04,640 --> 03:11:06,960 TRAUMATIC VIOLENT PLACES. SO 4928 03:11:06,960 --> 03:11:11,600 JUST HAVING A SAFE PLACE TO 4929 03:11:11,600 --> 03:11:13,600 LIVE. HAVING FOOD, LACKING 4930 03:11:13,600 --> 03:11:16,840 ESSENTIALS AN LACKING ESSENTIAL 4931 03:11:16,840 --> 03:11:18,840 SUPPORT. SCHOOL HELP AND 4932 03:11:18,840 --> 03:11:20,560 INTERVENTIONS THEY HAVE NO IDEA 4933 03:11:20,560 --> 03:11:23,240 HOW TO MANEUVER THROUGH THAT 4934 03:11:23,240 --> 03:11:25,880 SYSTEM. WILL IS JUST SO MUCH 4935 03:11:25,880 --> 03:11:29,720 THAT IS NEEDED AND IT DOES FEEL 4936 03:11:29,720 --> 03:11:32,160 OVERWHELMING BUT I WILL END WITH 4937 03:11:32,160 --> 03:11:33,640 THIS. I TRY TO STAY IN THE 4938 03:11:33,640 --> 03:11:36,680 SOLUTION. I TRY TO -- MY GIFT I 4939 03:11:36,680 --> 03:11:39,760 THINK IS REALLY PREVENTION JUST 4940 03:11:39,760 --> 03:11:41,360 BECAUSE OF MY LIVING EXPERIENCE, 4941 03:11:41,360 --> 03:11:45,200 THANK YOU, KAT, FOR THAT. AND 4942 03:11:45,200 --> 03:11:47,360 HAVING SELF-FORGIVENESS, MY 4943 03:11:47,360 --> 03:11:49,200 DAUGHTER HAS FORGIVEN ME, MY 4944 03:11:49,200 --> 03:11:50,320 DAUGHTER WHEN I HAVE TOLD HER 4945 03:11:50,320 --> 03:11:52,920 OVER AND OVER AGAIN YOU 4946 03:11:52,920 --> 03:11:54,240 UNDERSTAND WHY YOU CAN'T BRUSH 4947 03:11:54,240 --> 03:11:57,000 YOUR OWN TEETH VERY WELL. YES, 4948 03:11:57,000 --> 03:11:58,480 MOM, BECAUSE YOU DRANK WINE WHEN 4949 03:11:58,480 --> 03:12:01,320 YOU WERE PREGNANT, RIGHT. SHE 4950 03:12:01,320 --> 03:12:02,760 WILL SAY I KNOW MOM BUT YOU 4951 03:12:02,760 --> 03:12:04,720 DIDN'T KNOW. AND I SAID RIGHT. 4952 03:12:04,720 --> 03:12:05,640 BECAUSE I WOULD NEVER HURT YOU 4953 03:12:05,640 --> 03:12:09,760 ON PURPOSE. AND WAS SAYING MY 4954 03:12:09,760 --> 03:12:12,960 GRANDCHILDREN HAVE ALSO HAD TO 4955 03:12:12,960 --> 03:12:16,280 FORGIVE ME BECAUSE WHEN IT HITS 4956 03:12:16,280 --> 03:12:18,280 THE MEDIA BEFORE THERE'S A LOT 4957 03:12:18,280 --> 03:12:20,200 OF HATRED THAT COMES OUT IN THE 4958 03:12:20,200 --> 03:12:21,600 WORLD, THEY COME BACK AND SAY WE 4959 03:12:21,600 --> 03:12:23,000 ARE PROUD OF YOU AND WE LOVE THE 4960 03:12:23,000 --> 03:12:24,120 WORK THAT YOU DO AND KEEP 4961 03:12:24,120 --> 03:12:25,400 TALKING ABOUT IT. SO WITH THAT 4962 03:12:25,400 --> 03:12:27,640 I'M GOING TO STOP TALKING. AND 4963 03:12:27,640 --> 03:12:30,560 TURN IT BACK OVER TO JAN. 4964 03:12:30,560 --> 03:12:33,080 >> THANKS, KATHY. I'M GOING TO 4965 03:12:33,080 --> 03:12:35,520 OPEN THE FLOOR FOR QUESTIONS. I 4966 03:12:35,520 --> 03:12:37,040 HAVE SEVERAL THAT OCCURRED TO ME 4967 03:12:37,040 --> 03:12:39,040 LISTENING AND I HAVE A BUNCH I 4968 03:12:39,040 --> 03:12:40,520 HAVE BEEN WRITING DOWN THE LAST 4969 03:12:40,520 --> 03:12:44,960 FEW DAYS. ANYBODY ANYWHERE WHO 4970 03:12:44,960 --> 03:12:47,520 IS PARTICIPATING IN THIS, IF YOU 4971 03:12:47,520 --> 03:12:50,120 HAVE QUESTIONS, LET'S START A 4972 03:12:50,120 --> 03:12:52,360 DISCUSSION. WHAT I WOULD ASK IS 4973 03:12:52,360 --> 03:12:55,000 IF EVERYBODY CAN TURN THEIR 4974 03:12:55,000 --> 03:12:56,200 CAMERAS BACK ON SO WE CAN SEE 4975 03:12:56,200 --> 03:12:57,520 WHO IS WHO AND WHO IS ASKING 4976 03:12:57,520 --> 03:13:02,320 WHAT. THE FIRST THING I WANT TO 4977 03:13:02,320 --> 03:13:03,960 SAY WHEN I LISTEN TO THIS, I AM 4978 03:13:03,960 --> 03:13:06,240 STRUCK AND I KNOW KAT SAID IT 4979 03:13:06,240 --> 03:13:08,640 AND KATHY, BUT EVERYBODY IS 4980 03:13:08,640 --> 03:13:11,240 INDICATED IN ONE WAY OR THE 4981 03:13:11,240 --> 03:13:12,720 OTHER THAT INTERVENTION IS 4982 03:13:12,720 --> 03:13:18,240 PREVENTION. I'M JUST WONDERING 4983 03:13:18,240 --> 03:13:22,160 FROM THE PANEL, HOW YOU SEE 4984 03:13:22,160 --> 03:13:24,160 THAT. AND HOW DO YOU VIEW THAT. 4985 03:13:24,160 --> 03:13:26,360 LIKE FOR YOU, WHEN YOU SAY 4986 03:13:26,360 --> 03:13:27,440 INTERVENTION IS PREVENTION 4987 03:13:27,440 --> 03:13:29,440 BECAUSE THERE'S BEEN SO MUCH 4988 03:13:29,440 --> 03:13:32,920 FOCUS FOR SO MANY YEARS ON JUST 4989 03:13:32,920 --> 03:13:37,320 PREVENTING FASD. AND I THINK 4990 03:13:37,320 --> 03:13:38,560 WITH BEST OF INTENTIONS OVER THE 4991 03:13:38,560 --> 03:13:40,760 YEARS LOOKING AGENT HOW TO 4992 03:13:40,760 --> 03:13:44,120 EFFECTIVELY SUCCESSFULLY FROM A 4993 03:13:44,120 --> 03:13:46,480 STRENGTH BASED PERSPECTIVE HELP 4994 03:13:46,480 --> 03:13:48,200 PEOPLE WITH FASD TO BE 4995 03:13:48,200 --> 03:13:49,520 SUCCESSFUL HAS GOTTEN LOST IN 4996 03:13:49,520 --> 03:13:52,800 THE SHUFFLE. WITH THE BEST OF 4997 03:13:52,800 --> 03:13:53,720 INTENTIONS WITHOUT -- SO FROM 4998 03:13:53,720 --> 03:13:55,040 THE POINT OF VIEW INTERVENTION 4999 03:13:55,040 --> 03:13:56,800 IS PREVENTION, WONDERING WHAT 5000 03:13:56,800 --> 03:14:00,240 YOU GUYS THINK. WHOEVER WANTS TO 5001 03:14:00,240 --> 03:14:02,200 TACKLE THAT ONE. 5002 03:14:02,200 --> 03:14:05,320 >> I WILL JUMP IN JAN. FROM WHAT 5003 03:14:05,320 --> 03:14:07,840 I LEARN FROM DOING THE FASD 5004 03:14:07,840 --> 03:14:09,880 PROJECT, IF ANYBODY HAS WATCHED 5005 03:14:09,880 --> 03:14:11,880 IT OR HAD A CHANCE WE WILL DROP 5006 03:14:11,880 --> 03:14:15,960 A LINK TO HERE. AT THE END OF 5007 03:14:15,960 --> 03:14:20,360 THE FILM AS I TRAVEL ACROSS THE 5008 03:14:20,360 --> 03:14:21,800 COUNTRY AND I -- THE LAST 5009 03:14:21,800 --> 03:14:23,480 QUESTION THAT I INTERVIEWED 5010 03:14:23,480 --> 03:14:25,360 EVERYBODY I SAID WHAT IS IT DO 5011 03:14:25,360 --> 03:14:27,280 YOU LIKE SOMEONE -- I SAID WHAT 5012 03:14:27,280 --> 03:14:28,760 DO YOU WANT THE WORLD TO KNOW 5013 03:14:28,760 --> 03:14:32,960 ABOUT FASD. AND ACROSS THE BOARD 5014 03:14:32,960 --> 03:14:34,200 MAJORITY OF THE ANSWER WAS IT 5015 03:14:34,200 --> 03:14:38,280 WAS PREVENTABLE. NOT TO SAY HOW 5016 03:14:38,280 --> 03:14:40,280 IT IS PREVENTABLE BUT THAT IS 5017 03:14:40,280 --> 03:14:42,640 WHAT THE ANSWER CAME OUT 5018 03:14:42,640 --> 03:14:43,880 ORGANICALLY AS ASKED WHAT DO YOU 5019 03:14:43,880 --> 03:14:45,120 WANT THE WORLD TO KNOW ABOUT 5020 03:14:45,120 --> 03:14:47,360 FASD. WHAT IS THE MOST IMPORTANT 5021 03:14:47,360 --> 03:14:49,920 THING YOU LIKE TO GET ACROSS. 5022 03:14:49,920 --> 03:14:51,520 SO AT THE END OF THE FILM I HAVE 5023 03:14:51,520 --> 03:14:53,640 A SECTION THAT SAYS PREVENTABLE 5024 03:14:53,640 --> 03:14:56,160 PREVENTABLE PREVENTABLE. AFTER 5025 03:14:56,160 --> 03:14:57,480 TALKING WITH WISDAHL AND OTHER 5026 03:14:57,480 --> 03:14:58,800 PARENTS AND PEOPLE THAT HELPED 5027 03:14:58,800 --> 03:15:01,760 COLLABORATE AND PUT THIS FILM 5028 03:15:01,760 --> 03:15:03,560 TOGETHER, THE IDEA CAME CLEAR TO 5029 03:15:03,560 --> 03:15:05,040 ANSWER THE QUESTION IN THE WAY 5030 03:15:05,040 --> 03:15:07,280 THAT I HAVE COME TO UNDERSTAND 5031 03:15:07,280 --> 03:15:11,360 IT, JAN, IS THAT IF WE TURN OUR 5032 03:15:11,360 --> 03:15:12,080 ATTENTION TOWARDS INDIVIDUALS 5033 03:15:12,080 --> 03:15:14,560 LIVING WITH THIS, IT WILL TURN 5034 03:15:14,560 --> 03:15:16,320 OTHER PEOPLE'S ATTENTION TOWARDS 5035 03:15:16,320 --> 03:15:18,880 IT AS WELL. THEN WE HIT THAT 5036 03:15:18,880 --> 03:15:20,360 CRITICAL MASS OF UNDERSTANDING 5037 03:15:20,360 --> 03:15:23,360 OF WHAT FASD IS. SO MORE THAN 5038 03:15:23,360 --> 03:15:25,640 51% OF OUR GENERAL PUBLIC KNOWS 5039 03:15:25,640 --> 03:15:30,400 WHAT FASD STANDS FOR. AT THAT 5040 03:15:30,400 --> 03:15:32,480 POINT YOU ARE NOT SWIMMING 5041 03:15:32,480 --> 03:15:34,200 UPSTREAM BECAUSE IT CAUSES THIS 5042 03:15:34,200 --> 03:15:36,240 ORGANIC REACTION IN PEOPLE GO 5043 03:15:36,240 --> 03:15:38,240 OKAY HOW DID THEY GET THIS 5044 03:15:38,240 --> 03:15:40,360 DISABILITY? THE SAME PEOPLE ASK 5045 03:15:40,360 --> 03:15:42,000 HOW DO THEY GET AUTISM? YOU 5046 03:15:42,000 --> 03:15:44,840 DON'T NECESSARILY. BUT PEOPLE 5047 03:15:44,840 --> 03:15:47,440 ASK THAT QUESTION. I THINK THIS 5048 03:15:47,440 --> 03:15:48,840 THING IS THEY TURN ATTENTION TO 5049 03:15:48,840 --> 03:15:50,640 HELPING INDIVIDUALS LIVING WITH 5050 03:15:50,640 --> 03:15:52,760 IT AND WE CAN KIND OF PHOTO COPY 5051 03:15:52,760 --> 03:15:56,000 THAT FOR FASD AS WELL. KILLS TWO 5052 03:15:56,000 --> 03:15:57,800 BIRDS WITH ONE STONE, HELPING 5053 03:15:57,800 --> 03:15:58,800 INDIVIDUALS LIVE WITH IT AND 5054 03:15:58,800 --> 03:16:00,120 TURNING PEOPLE'S ATTENTION 5055 03:16:00,120 --> 03:16:01,480 TOWARDS THE DISABILITY WHICH 5056 03:16:01,480 --> 03:16:02,560 GAINS AN UNDERSTANDING OF WHERE 5057 03:16:02,560 --> 03:16:04,600 IT COMES FROM WHICH LEADS TO 5058 03:16:04,600 --> 03:16:10,480 NATURAL PREVENTION. 5059 03:16:10,480 --> 03:16:14,320 >> KAT, WHAT DO YOU SAY? 5060 03:16:14,320 --> 03:16:16,880 >> I AM GOING TO NEED A MOMENT 5061 03:16:16,880 --> 03:16:21,040 TO PROCESS THE QUESTION AND WHAT 5062 03:16:21,040 --> 03:16:24,400 JUSTIN JUST SAID. CAN YOU GIVE 5063 03:16:24,400 --> 03:16:25,000 ME A MINUTE? 5064 03:16:25,000 --> 03:16:27,320 >> YES, I CAN. IN THE MEANTIME, 5065 03:16:27,320 --> 03:16:29,080 EVERYBODY WHO DOESN'T HAVE THEIR 5066 03:16:29,080 --> 03:16:30,320 CAMERA ON, PLEASE CAN I GET YOU 5067 03:16:30,320 --> 03:16:33,040 TO TURN IT ON SO THEY CAN SEE 5068 03:16:33,040 --> 03:16:35,400 YOYOU. REBECCA, DID YOU HAVE 5069 03:16:35,400 --> 03:16:40,040 SOMETHING TO SAY ABOUT THAT? YOU 5070 03:16:40,040 --> 03:16:50,280 ARE ON MUTE. . 5071 03:16:52,280 --> 03:16:52,920 >> (INAUDIBLE) 5072 03:16:52,920 --> 03:17:03,480 >> YOU ARE ON MUTE, REBECCA. 5073 03:17:03,480 --> 03:17:05,120 STILL ON MUTE. REBECCA, WHILE 5074 03:17:05,120 --> 03:17:06,800 YOU FIX YOUR MUTE PROBLEM, 5075 03:17:06,800 --> 03:17:07,720 ANYBODY ELSE WANT TO ADDRESS 5076 03:17:07,720 --> 03:17:09,080 THAT? 5077 03:17:09,080 --> 03:17:10,960 >> JAN, I WOULD LIKE TO SAY 5078 03:17:10,960 --> 03:17:15,360 HAVING SPOKEN TO PROBABLY WELL 5079 03:17:15,360 --> 03:17:20,960 OVER A THOUSAND PEOPLE ABOUT 5080 03:17:20,960 --> 03:17:24,280 FASD AND HOW IT COMES ABOUT AND 5081 03:17:24,280 --> 03:17:26,840 THE PURPOSE IS NOT PREVENTION 5082 03:17:26,840 --> 03:17:29,080 PER SAY, IT IS ABOUT INTERVENTION 5083 03:17:29,080 --> 03:17:30,880 AND GETTING FOLKS IN NORTH 5084 03:17:30,880 --> 03:17:33,640 CAROLINA DIAGNOSED. MANY THAT 5085 03:17:33,640 --> 03:17:38,640 PROCESS I AM RAISING AWARENESS 5086 03:17:38,640 --> 03:17:41,720 OF FASD, HOW IT OCCUR, AND THERE 5087 03:17:41,720 --> 03:17:45,400 IS A RIPPLE EFFECT OF THAT, SO 5088 03:17:45,400 --> 03:17:48,040 THAT OTHER PEOPLE TAKE THAT IN 5089 03:17:48,040 --> 03:17:51,240 TO CONSIDERATION. I THINK 5090 03:17:51,240 --> 03:17:52,360 INTERVENTION IS ALWAYS 5091 03:17:52,360 --> 03:17:55,440 PREVENTION BUT PREVENTION IS NOT 5092 03:17:55,440 --> 03:17:56,280 ALWAYS INTERVENTION WITH THOSE 5093 03:17:56,280 --> 03:18:00,600 PEOPLE WHO ARE LIVING WITH FASD. 5094 03:18:00,600 --> 03:18:03,680 I KNOW EVERY YEAR JUST IN NORTH 5095 03:18:03,680 --> 03:18:05,920 CAROLINA WHICH IS NOT A HUGE 5096 03:18:05,920 --> 03:18:08,480 STATE, WE HAVE 7,000 PEOPLE THAT 5097 03:18:08,480 --> 03:18:11,840 ARE BORN WITH AN FASD THAT DOES 5098 03:18:11,840 --> 03:18:15,720 NOT COUNT MISCARRIAGES. AND 5099 03:18:15,720 --> 03:18:17,040 THAT IS OVERWHELMING TO THINK 5100 03:18:17,040 --> 03:18:21,560 ABOUT. 5101 03:18:21,560 --> 03:18:23,840 >> VERY LARGE NUMBER. ANYBODY 5102 03:18:23,840 --> 03:18:27,600 ELSE IS THINKING ABOUT THAT, I'M 5103 03:18:27,600 --> 03:18:31,680 JUST THINKING ABOUT THE 5104 03:18:31,680 --> 03:18:36,440 ELIGIBILITY ISSUE FOR SERVICES. 5105 03:18:36,440 --> 03:18:38,120 I THINK WHAT I'M HEARING AND 5106 03:18:38,120 --> 03:18:39,320 CERTAINLY MY EXPERIENCE OVER THE 5107 03:18:39,320 --> 03:18:40,800 YEARS TOLD ME THIS IS A REALLY 5108 03:18:40,800 --> 03:18:44,440 SIGNIFICANT PROBLEM. WHEN 5109 03:18:44,440 --> 03:18:48,680 SERVICES ARE BASED ON AN 5110 03:18:48,680 --> 03:18:51,320 INTELLECTUAL DISABILITY MODEL 5111 03:18:51,320 --> 03:18:54,600 AND 75% OF PEOPLE WITH FASD 5112 03:18:54,600 --> 03:18:55,960 DON'T HAVE THAT THEY DON'T 5113 03:18:55,960 --> 03:18:59,200 QUALIFY FOR SERVICES AND 5114 03:18:59,200 --> 03:19:01,360 THEREFORE A QUESTION IN MY MIND 5115 03:19:01,360 --> 03:19:02,480 HAS ALWAYS BEEN HOW MUCH IS A 5116 03:19:02,480 --> 03:19:05,080 NEGATIVE -- NEGATIVE OUTCOMES 5117 03:19:05,080 --> 03:19:08,640 RATHER THAT WE SEE RELATED TO 5118 03:19:08,640 --> 03:19:11,880 THAT THAT COULD BE POTENTIALLY 5119 03:19:11,880 --> 03:19:12,920 PREVENTED AMELIORATED 5120 03:19:12,920 --> 03:19:14,840 SIGNIFICANTLY IF WE DIDN'T DO 5121 03:19:14,840 --> 03:19:16,320 THAT. I -- KAT MENTIONED 5122 03:19:16,320 --> 03:19:18,760 SOMETHING THAT IS OCCURRING 5123 03:19:18,760 --> 03:19:21,680 HERE. IN BRITISH COLUMBIA, IN 5124 03:19:21,680 --> 03:19:23,160 TERMS OF OUR PERSONS WITH 5125 03:19:23,160 --> 03:19:27,240 DISABILITY PROGRAMS ARE NOW -- 5126 03:19:27,240 --> 03:19:28,600 FINANCIAL SUPPORT PIECES, ARE 5127 03:19:28,600 --> 03:19:32,000 BASED ON DIAGNOSIS AND NOT IQ. 5128 03:19:32,000 --> 03:19:33,680 THAT IS A FAIRLY SIGNIFICANT 5129 03:19:33,680 --> 03:19:35,800 MOVE TO TAP IN-- THAT'S HAPPENED 5130 03:19:35,800 --> 03:19:38,240 HERE THE LAST TEN YEARS. IT IS 5131 03:19:38,240 --> 03:19:39,640 MADE I THINK CORRECT ME IF I'M 5132 03:19:39,640 --> 03:19:41,880 WRONG, KAT, YOU ARE THE ONLY ONE 5133 03:19:41,880 --> 03:19:46,520 HERE FROM BC, IF THAT TO THE 5134 03:19:46,520 --> 03:19:48,200 BEST OF MY KNOWLEDGE THAT MADE A 5135 03:19:48,200 --> 03:19:49,400 SIGNIFICANT DIFFERENCE IN PEOPLE 5136 03:19:49,400 --> 03:19:51,520 BEING ABLE TO ACCESS THAT BASED 5137 03:19:51,520 --> 03:19:54,320 ON DIAGNOSIS AND ABLE TO WORK 5138 03:19:54,320 --> 03:19:55,840 PART TIME ON TOP OF IT AND KEEP 5139 03:19:55,840 --> 03:20:00,200 THAT MONEY. MAKE AS DIFFERENCE 5140 03:20:00,200 --> 03:20:03,640 IN TERMS OF QUALITY OF LIFE AND 5141 03:20:03,640 --> 03:20:05,760 YOUR ABILITY TO JUST PLAIN 5142 03:20:05,760 --> 03:20:08,080 SURVIVE. KAT, ANY THOUGHTS ABOUT 5143 03:20:08,080 --> 03:20:11,640 THAT? YOU WORK AS A MENTOR. 5144 03:20:11,640 --> 03:20:12,960 >> ABSOLUTELY. I KNOW WHEN I 5145 03:20:12,960 --> 03:20:18,760 STARTED WORKING AT 15, 5146 03:20:18,760 --> 03:20:21,480 MCDONALDS, THAT'S TAKING ME 5147 03:20:21,480 --> 03:20:25,040 BACK, I WASN'T RECEIVING PWD YET 5148 03:20:25,040 --> 03:20:26,680 SO THERE WAS CERTAIN STANDARDS 5149 03:20:26,680 --> 03:20:29,320 THAT I HAD TO MEET IN TERMS OF 5150 03:20:29,320 --> 03:20:30,920 YOU HAVE TO BE THERE CERTAIN 5151 03:20:30,920 --> 03:20:31,640 DAYS AND YOU HAVE TO CLOSE AND 5152 03:20:31,640 --> 03:20:34,800 YOU HAVE TO OPEN AND AT THE SAME 5153 03:20:34,800 --> 03:20:35,760 TIME I WAS GOING TO SCHOOL AND 5154 03:20:35,760 --> 03:20:39,880 IT WAS A LOT. FAST FORWARD TO 5155 03:20:39,880 --> 03:20:43,840 WHEN I STARTED RECEIVING PWD, IT 5156 03:20:43,840 --> 03:20:45,120 DEFINITELY HELPED OUT 5157 03:20:45,120 --> 03:20:50,000 FINANCIALLY. BECAUSE SINCE I 5158 03:20:50,000 --> 03:20:53,080 STARTED RECEIVING PWD, HONESTLY 5159 03:20:53,080 --> 03:20:56,000 THAT'S BEEN MY RENT. THAT IS HOW 5160 03:20:56,000 --> 03:20:58,520 I HAVE BEEN ABLE TO LIVE 5161 03:20:58,520 --> 03:21:09,040 BASICALLY. AND PAY MY RENT. AND 5162 03:21:14,240 --> 03:21:16,280 I WOULDN'T BE ABLE TO LIVE 5163 03:21:16,280 --> 03:21:18,280 WITHOUT IT, I DON'T MAKE NEAR 5164 03:21:18,280 --> 03:21:20,040 ENOUGH, I CANNOT WORK FULL TIME, 5165 03:21:20,040 --> 03:21:22,240 I DON'T HAVE THE STAMINA FOR IT. 5166 03:21:22,240 --> 03:21:24,600 AS I MENTIONED I AM A MENTOR AND 5167 03:21:24,600 --> 03:21:26,520 I'M VERY LUCKY WITH MY POSITION. 5168 03:21:26,520 --> 03:21:33,080 AND MY JOB. I CANNOT WORK FULL 5169 03:21:33,080 --> 03:21:34,320 TIME I HAVE A SET NUMBER OF 5170 03:21:34,320 --> 03:21:37,360 HOURS A WEEK. THAT IS ALL I CAN 5171 03:21:37,360 --> 03:21:43,040 DO MENTALLY. MENTORING IS A VERY 5172 03:21:43,040 --> 03:21:47,680 -- IT CAN BE TAXING MENTALLY. SO 5173 03:21:47,680 --> 03:21:51,040 WITHOUT THE ASSISTANCE FROM PWD 5174 03:21:51,040 --> 03:21:56,880 I WOULD NOT, I DON'T KNOW WHERE 5175 03:21:56,880 --> 03:21:58,480 I WOULD BE IF I'M COMPLETELY 5176 03:21:58,480 --> 03:22:02,560 HONEST. I REALLY DON'T. 5177 03:22:02,560 --> 03:22:04,840 >> REBECCA, SAME QUESTION. YOU 5178 03:22:04,840 --> 03:22:06,640 HAVE A JOB THAT ALLOWS YOU TO DO 5179 03:22:06,640 --> 03:22:08,120 THE SAME THING OVER AND OVER AND 5180 03:22:08,120 --> 03:22:10,000 OVER AGAIN, IT IS REPETITIVE, 5181 03:22:10,000 --> 03:22:12,240 WORKS FOR YOU, IT IS EXACTLY THE 5182 03:22:12,240 --> 03:22:13,760 STRUCTURE ROUTINE REPETITION YOU 5183 03:22:13,760 --> 03:22:16,480 NEED. WHAT WOULD HAPPEN TO YOU 5184 03:22:16,480 --> 03:22:20,440 IF THAT JOG WASN'T THERE, IF YOU 5185 03:22:20,440 --> 03:22:23,440 COULDN'T HAVE THAT KIND OF JOB? 5186 03:22:23,440 --> 03:22:28,520 >> THAT IS A GOOD QUESTION. 5187 03:22:28,520 --> 03:22:29,600 DIFFICULT BEFORE I HAD THAT JOB 5188 03:22:29,600 --> 03:22:32,160 I WENT TO SCHOOL TO BE A SPEECH 5189 03:22:32,160 --> 03:22:34,200 THERAPIST. AND THERE IS A LOT OF 5190 03:22:34,200 --> 03:22:36,280 DIFFERENT FOR A LOT OF REASONS 5191 03:22:36,280 --> 03:22:37,880 BUT IT WASN'T REPETITIVE AND 5192 03:22:37,880 --> 03:22:41,720 VERY ABSTRACT. BECAUSE NOT ONE 5193 03:22:41,720 --> 03:22:42,800 CHILD AS WITH KNOW IS THE SAME 5194 03:22:42,800 --> 03:22:44,760 WHEN IT COMES TO EDUCATING. AND 5195 03:22:44,760 --> 03:22:47,760 MY BRAIN COULDN'T WRAP ITSELF 5196 03:22:47,760 --> 03:22:49,240 AROUND HOW TO WORK AS SPEECH 5197 03:22:49,240 --> 03:22:52,560 THERAPIST. THAT WOULD HAVE BEEN 5198 03:22:52,560 --> 03:22:53,880 MY FALL BACK BUT THAT DIDN'T 5199 03:22:53,880 --> 03:22:59,800 WORK OUT. I DON'T KNOW WHAT -- I 5200 03:22:59,800 --> 03:23:04,200 WANT TO SAY I WOULD BE OKAY 5201 03:23:04,200 --> 03:23:06,360 BECAUSE THERE IS JOBS IN THE 5202 03:23:06,360 --> 03:23:08,600 INSURANCE INDUSTRY BUT THAT 5203 03:23:08,600 --> 03:23:12,480 COULD ME BEING NAIVE. I AM VERY 5204 03:23:12,480 --> 03:23:14,480 LUCKY. I DO HAVE MY STRUGGLES 5205 03:23:14,480 --> 03:23:16,640 WITH THE JOB ESPECIALLY WHEN NEW 5206 03:23:16,640 --> 03:23:18,360 THINGS COME OUT, NEW SYSTEMS AND 5207 03:23:18,360 --> 03:23:24,280 I TAKES ME LONGER TO GRASP THEM 5208 03:23:24,280 --> 03:23:27,480 IS IT PROBABLY WOULD NOT BE 5209 03:23:27,480 --> 03:23:30,600 POSITIVE IF I DIDN'T. I HAVE 5210 03:23:30,600 --> 03:23:39,600 BEEN VERY LUCKY. 5211 03:23:39,600 --> 03:23:45,040 >> WHAT DO YOU -- I KNOW THAT 5212 03:23:45,040 --> 03:23:46,240 CHRISTIE PETRENKO HAS SOMETHING TO 5213 03:23:46,240 --> 03:23:47,520 SAY, BUT BEFORE YOU DO CHRISTIE, 5214 03:23:47,520 --> 03:23:49,720 I WANT TO -- MAYBE YOU SHOULD 5215 03:23:49,720 --> 03:23:51,520 ASK FIRST THEN I WILL ASK PA 5216 03:23:51,520 --> 03:23:52,120 QUESTION I WANT TO ASK. 5217 03:23:52,120 --> 03:23:56,240 >> I WAS GOING TO COMMENT 5218 03:23:56,240 --> 03:23:57,640 REGARDING THE ELIGIBILITY FOR 5219 03:23:57,640 --> 03:23:58,960 SERVICES IN THE COMMUNITY BEING 5220 03:23:58,960 --> 03:24:02,880 TIED TO DIAGNOSIS AND JUST VALUE 5221 03:24:02,880 --> 03:24:04,240 OF GETTING THOSE SERVICES WE 5222 03:24:04,240 --> 03:24:06,920 KNOW FROM RESEARCH, SOME OF THE 5223 03:24:06,920 --> 03:24:07,840 SEMINOLE WORK THAT (INAUDIBLE) 5224 03:24:07,840 --> 03:24:11,080 DID IN THE '90s THAT DIAGNOSIS 5225 03:24:11,080 --> 03:24:13,400 ARE GETTING DEVELOPMENTAL 5226 03:24:13,400 --> 03:24:14,960 DISABILITY SERVICES IS ONE OF 5227 03:24:14,960 --> 03:24:16,800 THE MOST PROTECTIVE FACTORS FOR 5228 03:24:16,800 --> 03:24:20,480 ADVERSE OUTCOMES. WE ALSO I OOH 5229 03:24:20,480 --> 03:24:21,720 IN NEW YORK AND RIGHT NOW FASD 5230 03:24:21,720 --> 03:24:23,960 IS NOT RECOGNIZED AS 5231 03:24:23,960 --> 03:24:25,120 DEVELOPMENTAL DISABILITY IN THE 5232 03:24:25,120 --> 03:24:26,280 STATE THROUGH LEGISLATION SO WE 5233 03:24:26,280 --> 03:24:29,200 CAN ONLY GET A VERY, VERY FEW 5234 03:24:29,200 --> 03:24:33,080 PEOPLE WITH FAS WHO MEET CDC 5235 03:24:33,080 --> 03:24:35,120 CRITERIA QUALIFIED WITH OTHER 5236 03:24:35,120 --> 03:24:37,920 THINGS MET. SO WE GOT -- WE HAVE 5237 03:24:37,920 --> 03:24:39,640 TRIED INCREASING AWARENESS, 5238 03:24:39,640 --> 03:24:42,600 MEETING WITH OPWDD WHICH IS OUR 5239 03:24:42,600 --> 03:24:43,560 DISABILITY ORGANIZATION NEW 5240 03:24:43,560 --> 03:24:49,680 YORK, WE TRIED ALL THE 5241 03:24:49,680 --> 03:24:50,840 STRATEGIES AND WE COME TO 5242 03:24:50,840 --> 03:24:52,160 LEGISLATIVE APPROACH WHERE 5243 03:24:52,160 --> 03:24:53,400 GOVERNMENT RELATIONS DEPARTMENT, 5244 03:24:53,400 --> 03:24:57,720 UNIVERSITY OF ROCHESTER HAS BEEN 5245 03:24:57,720 --> 03:24:58,560 SPEARHEADING WITH LEGISLATORS IN 5246 03:24:58,560 --> 03:25:01,720 THE STATE TO ADD. IT HAD BEEN AN 5247 03:25:01,720 --> 03:25:03,200 UPHILL BATTLE AND PUSH BACK 5248 03:25:03,200 --> 03:25:04,720 COMES FROM DISABILITY AGENCY 5249 03:25:04,720 --> 03:25:06,200 ITSELF BECAUSE THEY SEE IT AS A 5250 03:25:06,200 --> 03:25:09,200 FISCAL PROBLEM. AND IT WILL 5251 03:25:09,200 --> 03:25:13,160 CREATE MORE DEMAND FOR LIMITED 5252 03:25:13,160 --> 03:25:14,400 SERVICES AS IT IS BUT IT IS AN 5253 03:25:14,400 --> 03:25:15,200 EQUITY CHALLENGE THERE ARE 5254 03:25:15,200 --> 03:25:20,680 PEOPLE WHO ARE GETTING SERVICES 5255 03:25:20,680 --> 03:25:23,120 WHO HAVE SIMILAR OR FEWER 5256 03:25:23,120 --> 03:25:25,160 SUPPORT NEEDS AS FOLKS WITH FASD 5257 03:25:25,160 --> 03:25:28,920 SO WE ARE PERSEVERING BUT IT 5258 03:25:28,920 --> 03:25:32,640 VARIES A LOT IN THE US. 5259 03:25:32,640 --> 03:25:34,240 >> YOU ARE INDICATING SOMETHING 5260 03:25:34,240 --> 03:25:38,560 TALKED ABOUT IN HERE, KATHY, THE 5261 03:25:38,560 --> 03:25:44,640 STIGMA PIECE? AND HOW STIGMA 5262 03:25:44,640 --> 03:25:45,440 SPREADS TENTACLES THROUGHOUT AND 5263 03:25:45,440 --> 03:25:52,960 HOW IT IMPACTS EVERYTHING DAMAGE 5264 03:25:52,960 --> 03:25:57,680 PUT A QUESTION, WONDERING IF THE 5265 03:25:57,680 --> 03:26:00,440 PANEL HOW TO ADDRESS THE 5266 03:26:00,440 --> 03:26:02,280 PREVENTION MESSAGE. TO ADDRESS 5267 03:26:02,280 --> 03:26:03,000 PREVENTION WITHOUT CONVEYING 5268 03:26:03,000 --> 03:26:06,760 THAT PEOPLE WOULD PREFER YOU NOT 5269 03:26:06,760 --> 03:26:09,920 BE YOU BECAUSE WORKING WITH THE 5270 03:26:09,920 --> 03:26:11,520 CHANGE MAKER GROUP THIS IS A 5271 03:26:11,520 --> 03:26:16,720 DISCUSSION AMONG LARGE GROUP 5272 03:26:16,720 --> 03:26:21,840 AROUND CAUSED BY SOMETHING AND 5273 03:26:21,840 --> 03:26:25,520 LESS THAN AND HOW THAT MESSAGING 5274 03:26:25,520 --> 03:26:28,000 HAS BEEN INADVERTENTLY USED IN 5275 03:26:28,000 --> 03:26:29,800 WAYS NEVER INTEND AND HOW THAT 5276 03:26:29,800 --> 03:26:35,080 STIGMA AND STEREOTYPING PIECE 5277 03:26:35,080 --> 03:26:35,880 AFFECTED WOMEN AND PEOPLE WITH 5278 03:26:35,880 --> 03:26:41,200 FASD. DO YOU HAVE ANYBODY GOT A 5279 03:26:41,200 --> 03:26:47,680 THOUGHT WHEN YOU LOOK AT 5280 03:26:47,680 --> 03:26:48,200 PREVENTION, WHAT WOULD YOU 5281 03:26:48,200 --> 03:26:51,560 CHANGE? HOW WOULD YOU CHANGE IT? 5282 03:26:51,560 --> 03:26:54,000 THAT IS A BIG QUESTION. IF YOU 5283 03:26:54,000 --> 03:26:55,760 CAN'T ANSWER IT, I DON'T HAVE AN 5284 03:26:55,760 --> 03:27:06,080 ANSWER. KATHY, DO YOU? 5285 03:27:06,080 --> 03:27:07,760 >> I DON'T KNOW THAT I CAN GET 5286 03:27:07,760 --> 03:27:11,400 AT WHAT DAN IS ASKING. BUT I DO 5287 03:27:11,400 --> 03:27:14,840 WANT TO MAKE ONE BRIEF POINT 5288 03:27:14,840 --> 03:27:15,920 ABOUT THE INTERVENTION IS 5289 03:27:15,920 --> 03:27:21,600 PREVENTION. 5290 03:27:21,600 --> 03:27:23,760 WHEN WE THINK INTERVENTION IT IS 5291 03:27:23,760 --> 03:27:26,440 TWOFOLD, IT IS INTERVENTION WITH 5292 03:27:26,440 --> 03:27:28,560 THE CHILD OR ADOLESCENT OR 5293 03:27:28,560 --> 03:27:31,000 ADULT, THAT'S BEEN AFFECTED AND 5294 03:27:31,000 --> 03:27:32,800 CERTAINLY THE MOTHER. BUT WHEN 5295 03:27:32,800 --> 03:27:36,360 WE DIAGNOSE ONE CHILD WITH AN 5296 03:27:36,360 --> 03:27:40,680 FASD, THE PREVENTION IS JUST -- 5297 03:27:40,680 --> 03:27:42,640 IT IS UNMEASURABLE REALLY 5298 03:27:42,640 --> 03:27:43,920 BECAUSE AGAIN FOR A LOT OF THESE 5299 03:27:43,920 --> 03:27:45,160 WOMEN THEY ARE IN AND OUT OF 5300 03:27:45,160 --> 03:27:50,120 SYSTEMS OF CARE, WHEN THERE IS 5301 03:27:50,120 --> 03:27:51,320 ONE CHILD WITH THAT DIAGNOSIS 5302 03:27:51,320 --> 03:27:52,360 NOT ONLY THE SCHOOLS BUT 5303 03:27:52,360 --> 03:27:53,680 ADDICTION TREATMENT CENTER THE 5304 03:27:53,680 --> 03:27:56,840 MENTAL HEALTH PLACE, PEOPLE ARE 5305 03:27:56,840 --> 03:27:58,240 LEARNING WHAT IS IT? I NEVER 5306 03:27:58,240 --> 03:27:59,640 HEARD OF IT THAT IS HOW THEY ARE 5307 03:27:59,640 --> 03:28:04,040 LEARNING. BUT INTERVENTION WITH 5308 03:28:04,040 --> 03:28:06,480 THE MOTHER INTO SUPPORT SERVICES 5309 03:28:06,480 --> 03:28:08,120 INTO ADDICTION TREATMENT 5310 03:28:08,120 --> 03:28:11,320 SERVICES, I MEAN CLEARLY THERE 5311 03:28:11,320 --> 03:28:13,120 IS NO BETTER PREVENTION. SO I 5312 03:28:13,120 --> 03:28:14,440 JUST REALLY WANTED TO MAKE THAT 5313 03:28:14,440 --> 03:28:15,920 POINT. BUT THE OTHER THING I DID 5314 03:28:15,920 --> 03:28:21,360 WANT TO SAY, EVEN IN THE DC 5315 03:28:21,360 --> 03:28:23,160 AREA, THERE IS NO DIAGNOSIS, NO 5316 03:28:23,160 --> 03:28:24,600 GO TO PERSON FOR DIAGNOSIS, 5317 03:28:24,600 --> 03:28:29,440 PEOPLE CAN'T GET INTO THE PEOPLE 5318 03:28:29,440 --> 03:28:31,760 USE TO TO KENNEDY KREIGER FOR A 5319 03:28:31,760 --> 03:28:33,640 DIAGNOSIS. THE IDEA THE 5320 03:28:33,640 --> 03:28:35,000 DIAGNOSIS PLEAD LEAD TO SERVICES 5321 03:28:35,000 --> 03:28:36,880 MAKES COMPLETE SENSE AND GLAD IT 5322 03:28:36,880 --> 03:28:40,680 IS WORKING IN BC BUT HERE WE 5323 03:28:40,680 --> 03:28:42,120 HAVE PEOPLE WITH EXPOSURES LOTS 5324 03:28:42,120 --> 03:28:45,880 OF EXPOSURES BUT FOCUSED ON DRUG 5325 03:28:45,880 --> 03:28:48,680 EXPOE SHEER REPRODUCIBILITY SURE 5326 03:28:48,680 --> 03:28:50,720 THERE IS NO RECOGNITION THAT 5327 03:28:50,720 --> 03:28:52,920 THEY WERE USING ALCOHOL SO WE 5328 03:28:52,920 --> 03:28:54,960 HAVE THAT ISSUE TO CONTEND WITH. 5329 03:28:54,960 --> 03:28:59,080 SO THE DIAGNOSIS IS WE ARE SO 5330 03:28:59,080 --> 03:29:00,120 FAR BEHIND IN THAT AT LEAST IN 5331 03:29:00,120 --> 03:29:01,720 THIS AREA. I WANTED TO SPEAK TO 5332 03:29:01,720 --> 03:29:03,640 THAT. MAYBE SOMEBODY ELSE CAN 5333 03:29:03,640 --> 03:29:06,960 SPEAK TO DAN'S QUESTION. 5334 03:29:06,960 --> 03:29:10,560 >> I THINK TO NOTE ON THAT, FAS 5335 03:29:10,560 --> 03:29:12,480 REALLY ISN'T LIKE A DESIGNER 5336 03:29:12,480 --> 03:29:16,880 DISABILITY, IT IS MORE OF LIKE 5337 03:29:16,880 --> 03:29:18,480 IT IS MORE OF LIKE DEPENDS ON 5338 03:29:18,480 --> 03:29:20,720 THE PERSON, IT IS NOT LIKE THIS 5339 03:29:20,720 --> 03:29:21,960 BIG THING THAT EVERYONE IS 5340 03:29:21,960 --> 03:29:26,360 REALLY AWARE OF BECAUSE AS WE 5341 03:29:26,360 --> 03:29:27,920 SEE WITH LIKE AUTISM, DOWN 5342 03:29:27,920 --> 03:29:29,960 SYNDROME, THESE BIGGER NAMES, 5343 03:29:29,960 --> 03:29:31,280 MORE PEOPLE WANT TO PUT MORE 5344 03:29:31,280 --> 03:29:36,120 ATTENTION INTO THAT WHERE AS 5345 03:29:36,120 --> 03:29:38,440 KIDS WITH FAS ARE STUCK 5346 03:29:38,440 --> 03:29:39,960 STRUGGLING BUT PEOPLE ABOUT 5347 03:29:39,960 --> 03:29:43,080 AWARE OF THAT FACT. SO WE ARE 5348 03:29:43,080 --> 03:29:46,320 TRYING TO I GUESS IT NEEDS TO BE 5349 03:29:46,320 --> 03:29:51,280 MORE LIKE THE PARENTS NOT REALLY 5350 03:29:51,280 --> 03:29:52,520 I DON'T WANT TO TELL THEM NOT TO 5351 03:29:52,520 --> 03:29:55,320 DRINK BUT LIKE TO MAKE THEM 5352 03:29:55,320 --> 03:29:56,320 AWARE THAT THERE ARE OTHER KIDS 5353 03:29:56,320 --> 03:29:57,360 THAT ARE SUFFERING BECAUSE OF 5354 03:29:57,360 --> 03:30:04,400 THE MOTHERS CHOICES. I THINK 5355 03:30:04,400 --> 03:30:05,640 I'M UNDERSTANDING WHAT THIS 5356 03:30:05,640 --> 03:30:13,000 QUESTION IS. WE NEED TO, LIKE 5357 03:30:13,000 --> 03:30:14,440 THE MOTHER, SOMEONE SAID THAT 5358 03:30:14,440 --> 03:30:18,240 YOU CAN'T REALLY TELL THEM NOT 5359 03:30:18,240 --> 03:30:20,440 TO BE THEMSELVES. BECAUSE PEOPLE 5360 03:30:20,440 --> 03:30:21,720 OBVIOUSLY WANT TO DRINK. A LOT 5361 03:30:21,720 --> 03:30:24,920 OF PEOPLE WANT TO DRINK. BUT 5362 03:30:24,920 --> 03:30:28,680 JUST TO MAKE THEM AWARE OF THERE 5363 03:30:28,680 --> 03:30:29,920 ARE THINGS THAT HAPPEN, THERE 5364 03:30:29,920 --> 03:30:32,840 ARE CONSEQUENCES TO EVERY ACTION 5365 03:30:32,840 --> 03:30:37,560 AND IT IS THEIR DECISION. SO IF 5366 03:30:37,560 --> 03:30:41,600 THEY WANT TO MAKE THE LIFE OF 5367 03:30:41,600 --> 03:30:44,200 THEIR CHILD A BETTER PLACE THEN 5368 03:30:44,200 --> 03:30:48,720 THAT IS THEIR DECISION. IF THAT 5369 03:30:48,720 --> 03:30:50,480 HELPS AT ALL. TO ANSWER THE 5370 03:30:50,480 --> 03:30:54,400 QUESTION. 5371 03:30:54,400 --> 03:30:58,120 >> CHRISTIE SAID READ DAN'S 5372 03:30:58,120 --> 03:30:59,320 QUESTION, THIS IS A MUCH MORE 5373 03:30:59,320 --> 03:31:00,840 EFFECTIVE PIECE HERE. THE KEY 5374 03:31:00,840 --> 03:31:02,520 IS SHOWING THE FULL PERSON AND 5375 03:31:02,520 --> 03:31:05,400 WHAT HELPS PEOPLE THRIVE LIFE 5376 03:31:05,400 --> 03:31:07,120 GIVING PARENT AND PIPE WILL THE 5377 03:31:07,120 --> 03:31:08,880 FASD RATHER THAN THE STEREOTYPES 5378 03:31:08,880 --> 03:31:10,720 OF HOW PRE-NATAL ALCOHOL 5379 03:31:10,720 --> 03:31:11,640 EXPOSURE HAPPENS AND WHAT IT 5380 03:31:11,640 --> 03:31:13,440 LOOKS LIKE. AND THE KEY PIECE 5381 03:31:13,440 --> 03:31:18,000 SHE IS SAYING THERE, IT DUDN'T 5382 03:31:18,000 --> 03:31:19,440 LOOK LIKE SOMETHING. IT IS SO 5383 03:31:19,440 --> 03:31:24,920 VARIABLE. WHEREAS IN MANY OTHER 5384 03:31:24,920 --> 03:31:26,600 DISABILITIES, PEOPLE KIND OF -- 5385 03:31:26,600 --> 03:31:28,280 I WILL PICK DOWN SYNDROME IT IS 5386 03:31:28,280 --> 03:31:30,520 ONE PEOPLE REALLY GRASP. IS WHEN 5387 03:31:30,520 --> 03:31:31,880 THEY SEE A PERSON WITH DOWN 5388 03:31:31,880 --> 03:31:33,880 SYNDROME THEY AUTOMATICALLY 5389 03:31:33,880 --> 03:31:35,120 ADJUST THEIR EXPECTATIONS AND 5390 03:31:35,120 --> 03:31:37,560 THEY START TO ACCOMMODATE, 5391 03:31:37,560 --> 03:31:39,160 WHEREAS WHEN YOU TALK FASD 5392 03:31:39,160 --> 03:31:41,560 PEOPLE THINK BEHAVIOR BAD KID 5393 03:31:41,560 --> 03:31:44,920 BAD PARENT. THEY ARE NOT 5394 03:31:44,920 --> 03:31:48,080 GRASPING THE DIFFERENCES. AND I 5395 03:31:48,080 --> 03:31:50,160 THINK THAT AGAIN GOING BACK TO 5396 03:31:50,160 --> 03:31:51,040 DISCUSSIONS THAT I HAVE BEEN 5397 03:31:51,040 --> 03:31:53,600 PRIVILEGED TO BE PART OF WITH 5398 03:31:53,600 --> 03:31:56,760 LARGER GROUP, THE IDEA THAT 5399 03:31:56,760 --> 03:31:58,760 SOMEHOW THEY ARE LESS THAN AND 5400 03:31:58,760 --> 03:32:04,760 NOT VALUABLE, AND COMES BACK TO 5401 03:32:04,760 --> 03:32:06,400 STIGMA STEREOTYPE WHICH IS A 5402 03:32:06,400 --> 03:32:07,520 VERY SIGNIFICANT CONVERSATION 5403 03:32:07,520 --> 03:32:09,840 THAT NEEDS TO HAPPEN. AND I 5404 03:32:09,840 --> 03:32:11,400 THINK IT IS ACTUALLY OUTSIDE 5405 03:32:11,400 --> 03:32:13,640 WHERE WE WANT TO GO RIGHT HERE. 5406 03:32:13,640 --> 03:32:15,160 SO I'M GOING TO MOVE AWAY FROM 5407 03:32:15,160 --> 03:32:17,560 THAT IF I CAN AND I'M GOING TO 5408 03:32:17,560 --> 03:32:21,440 ASK EACH ONE ON THE PANEL YOU 5409 03:32:21,440 --> 03:32:22,480 HAVE PEOPLE IN YOUR LIFE THAT 5410 03:32:22,480 --> 03:32:24,800 ARE A MAJOR SUPPORT. MY QUESTION 5411 03:32:24,800 --> 03:32:27,600 TO YOU AND IF YOU DON'T WANT TO 5412 03:32:27,600 --> 03:32:29,040 ANSWER, PLEASE SAY SO, WHAT 5413 03:32:29,040 --> 03:32:31,600 WOULD HAPPEN IF THE MOST 5414 03:32:31,600 --> 03:32:32,600 IMPORTANT PERSON WHO SUPPORTS 5415 03:32:32,600 --> 03:32:34,880 YOU WASN'T THERE? IF THEY 5416 03:32:34,880 --> 03:32:36,080 SUDDENLY AT THIS APPEARED 5417 03:32:36,080 --> 03:32:37,120 TOMORROW, WHAT WOULD -- 5418 03:32:37,120 --> 03:32:39,440 DISAPPEARED TOMORROW, WHAT WOULD 5419 03:32:39,440 --> 03:32:39,680 HAPPEN? 5420 03:32:39,680 --> 03:32:41,920 >> I WILL ANSWER THIS FIRST. I 5421 03:32:41,920 --> 03:32:44,120 THINK LIKE MY GRANDMOTHER IS 5422 03:32:44,120 --> 03:32:45,440 OBVIOUSLY MY BIGGEST SUPPORT 5423 03:32:45,440 --> 03:32:48,680 SYSTEM. AND THROUGHOUT MY LIFE 5424 03:32:48,680 --> 03:32:51,800 LIKE IF SHE WASN'T THERE, GOD 5425 03:32:51,800 --> 03:32:54,000 KNOWS WHERE I WOULD BE RIGHT 5426 03:32:54,000 --> 03:32:56,960 NOW. I COULD BE IN VERY WELL BE 5427 03:32:56,960 --> 03:33:02,240 IN JAIL RIGHT NOW. BUT TESTIFY 5428 03:33:02,240 --> 03:33:03,640 SHE WERE TO DUST JUST DAYS PEER, 5429 03:33:03,640 --> 03:33:04,880 I WOULD BE EFFORT WILL ON MY -- 5430 03:33:04,880 --> 03:33:06,280 DISAPPEAR, I WOULD BE ON MY OWN. 5431 03:33:06,280 --> 03:33:08,520 I UNDERSTAND A LOT OF KIDS WITH 5432 03:33:08,520 --> 03:33:09,640 FAS STRUGGLE WITHOUT THAT 5433 03:33:09,640 --> 03:33:15,320 SUPPORT SYSTEM. IS THEY TRY TO 5434 03:33:15,320 --> 03:33:16,720 HELP THEMSELVES UNDERSTAND THEIR 5435 03:33:16,720 --> 03:33:18,120 SURROUNDINGS THAT ADULT USUALLY 5436 03:33:18,120 --> 03:33:24,640 HAS TO BE THERE. I HONESTLY 5437 03:33:24,640 --> 03:33:26,600 THINK IF MY GRANDMOTHER 5438 03:33:26,600 --> 03:33:27,960 DISAPPEARED I WOULD PROBABLY BE 5439 03:33:27,960 --> 03:33:29,400 IN JAIL OR ON THE STREETS RIGHT 5440 03:33:29,400 --> 03:33:29,600 NOW. 5441 03:33:29,600 --> 03:33:36,320 >> REBECCA, WHAT DO YOU THINK? 5442 03:33:36,320 --> 03:33:43,880 >> SO I'M 43, MANY OF US ARE 5443 03:33:43,880 --> 03:33:49,240 HAVE DISMATURITY OF HALF OF OUR 5444 03:33:49,240 --> 03:33:54,480 ACTUAL AGE. I'M 21. I STILL NEED 5445 03:33:54,480 --> 03:33:57,920 THE SUPPORT. WOULD I BE OKAY 5446 03:33:57,920 --> 03:34:00,760 WITHOUT MY HUSBAND AND WITHOUT 5447 03:34:00,760 --> 03:34:04,120 MY PARENTS WHO ALSO JUMP IN WHEN 5448 03:34:04,120 --> 03:34:05,760 NEEDED? SOME DAYS I THINK I 5449 03:34:05,760 --> 03:34:11,080 WOULD BE FINE BUT IN REALITY, HI 5450 03:34:11,080 --> 03:34:13,880 WOULD BE IN A LOT OF DEBT. MONEY 5451 03:34:13,880 --> 03:34:17,040 IS AN ISSUE FOR MANY OF US 5452 03:34:17,040 --> 03:34:21,760 INCLUDING MYSEL MYSELF. IMPULSI. 5453 03:34:21,760 --> 03:34:24,240 I'M PEER PRESSURE AD LOT EVEN AT 5454 03:34:24,240 --> 03:34:27,760 43. IMPULSIVITY PIECE PLAYS INTO 5455 03:34:27,760 --> 03:34:30,120 THAT. BUT IF I DIDN'T HAVE MY 5456 03:34:30,120 --> 03:34:31,480 HUSBAND, EVEN MY KIDS, THEY ARE 5457 03:34:31,480 --> 03:34:33,000 OLD ENOUGH TO UNDERSTAND AT 5458 03:34:33,000 --> 03:34:36,800 BASIC LEVEL WHAT I HAVE, IF I 5459 03:34:36,800 --> 03:34:39,000 HAVE A FRIEND LIKE OH LIT'S TAKE 5460 03:34:39,000 --> 03:34:41,080 A TRIP HERE, I GET HYPED UP AND 5461 03:34:41,080 --> 03:34:43,240 MY IMPULSIVITY SAYS OKAY LET'S 5462 03:34:43,240 --> 03:34:45,040 DO IT IT. I DON'T THINK ABOUT E 5463 03:34:45,040 --> 03:34:47,080 MONEY PIECE, I DON'T THINK ABOUT 5464 03:34:47,080 --> 03:34:48,440 MY HUSBAND HAS TO TAKE CARE OF 5465 03:34:48,440 --> 03:34:49,960 KIDS FOR THE NEXT THREE DAYS 5466 03:34:49,960 --> 03:34:52,760 WHICH HE CAN DO BUT THAT IS NOT 5467 03:34:52,760 --> 03:34:54,240 FAIR. SO I NEED HIM, I NEED MY 5468 03:34:54,240 --> 03:35:00,280 FAMILY. WOULD I BE OKAY? 5469 03:35:00,280 --> 03:35:01,840 THEORETICALLY BUT I THINK I 5470 03:35:01,840 --> 03:35:04,520 WOULD BE IN DEBT AND I THIS I 5471 03:35:04,520 --> 03:35:06,400 DEBT WOULD BE MY NEW NORMAL AND 5472 03:35:06,400 --> 03:35:08,000 I THINK I WOULD THINK IT WOULD 5473 03:35:08,000 --> 03:35:11,040 BE OKAY BUT IT WOULDN'T BE. I 5474 03:35:11,040 --> 03:35:15,800 HAVE -- I'M STABLE RIGHT NOW. IF 5475 03:35:15,800 --> 03:35:17,920 I DIDN'T HAVE HIM, IF I DIDN'T 5476 03:35:17,920 --> 03:35:20,240 HAVE KIDS, I DO LIKE TO GO OUT 5477 03:35:20,240 --> 03:35:21,600 AND BE SOCIAL. BUT NOW I HAVE 5478 03:35:21,600 --> 03:35:22,920 SOMETHING TO COME HOME TO, IF I 5479 03:35:22,920 --> 03:35:24,520 DIDN'T HAVE THAT I HONESTLY 5480 03:35:24,520 --> 03:35:25,760 DON'T KNOW WHERE I WOULD BE 5481 03:35:25,760 --> 03:35:27,640 BECAUSE WE ARE BORN ADDICTS. 5482 03:35:27,640 --> 03:35:31,120 I'M NOT AN ADDICT BUT IT IS A 5483 03:35:31,120 --> 03:35:34,440 SCARY THOUGHT. AND I AM VERY 5484 03:35:34,440 --> 03:35:36,960 LUCKY. THOSE SUPPORTS ARE 5485 03:35:36,960 --> 03:35:40,480 NEEDED. ABSOLUTELY. 5486 03:35:40,480 --> 03:35:49,440 >> KAT. 5487 03:35:49,440 --> 03:35:54,200 >> FOR ME, THERE'S TWO PIECES 5488 03:35:54,200 --> 03:35:56,720 HERE. WHAT NICK AND REBECCA 5489 03:35:56,720 --> 03:35:57,440 MENTIONED, THEY HAVE MENTIONED 5490 03:35:57,440 --> 03:36:07,920 PEOPLE IN THEIR LIFE WHO ARE 5491 03:36:07,920 --> 03:36:09,800 FAMILY MEMBERS. I OBVIOUSLY 5492 03:36:09,800 --> 03:36:12,920 HAVE THOSE PEOPLE TOO BUT THERE 5493 03:36:12,920 --> 03:36:15,160 IS ANOTHER PIECE HERE OF I HAVE 5494 03:36:15,160 --> 03:36:18,600 A SUPPORT WORKER. SHE IS PAID 5495 03:36:18,600 --> 03:36:20,520 TO BE IN MY LIFE VERSUS THOSE 5496 03:36:20,520 --> 03:36:22,000 WHO ARE NOT PAID TO BE IN MY 5497 03:36:22,000 --> 03:36:27,720 LIFE. THERE IS THAT HUGE 5498 03:36:27,720 --> 03:36:31,080 DIFFERENCE. SO I WILL ENHANCE 5499 03:36:31,080 --> 03:36:34,560 THIS A LITTLE BIT. IF MY SUPPORT 5500 03:36:34,560 --> 03:36:37,080 WORKER SUDDENLY DISAPPEARED I 5501 03:36:37,080 --> 03:36:38,560 KNOW I STILL HAVE PEOPLE IN MY 5502 03:36:38,560 --> 03:36:40,360 LIFE NOT PAID TO BE THERE AND 5503 03:36:40,360 --> 03:36:42,360 THEY ARE THERE UNCONDITIONALLY 5504 03:36:42,360 --> 03:36:43,600 NO MATTER WHAT. IF THE PEOPLE IN 5505 03:36:43,600 --> 03:36:46,520 MY LIFE WHO ARE NOT PAID 5506 03:36:46,520 --> 03:36:47,600 DISAPPEARED, THAT WOULD BE A 5507 03:36:47,600 --> 03:36:49,640 COMPLETELY DIFFERENT STORY. IF 5508 03:36:49,640 --> 03:36:56,800 EVERYONE DISAPPEARED, I WOULD 5509 03:36:56,800 --> 03:37:01,200 NOT LAST LONG. I KNOW THAT. I 5510 03:37:01,200 --> 03:37:03,880 WOULD GET BY FOR A LITTLE BIT. 5511 03:37:03,880 --> 03:37:06,640 BECAUSE I WOULD GO INTO AUTO 5512 03:37:06,640 --> 03:37:08,840 PILOT AS I USUALLY DO BUT I 5513 03:37:08,840 --> 03:37:10,760 WOULD NOT -- I WOULD NOT BE ABLE 5514 03:37:10,760 --> 03:37:17,360 TO FUNCTION FOR LONG. I NEED 5515 03:37:17,360 --> 03:37:20,680 THAT SUPPORT AND AS MUCH AS I 5516 03:37:20,680 --> 03:37:22,480 VALUE MY SUPPORT WORKER AND ONE 5517 03:37:22,480 --> 03:37:27,200 THING NICK AND REBECCA HAVE SAID 5518 03:37:27,200 --> 03:37:28,560 MOVING OUTSIDE WHAT ALLUDED TO 5519 03:37:28,560 --> 03:37:30,600 IS THE FACT THAT THOSE PEOPLE IN 5520 03:37:30,600 --> 03:37:32,400 OUR LIVES WHO ARE NOT PAID TO BE 5521 03:37:32,400 --> 03:37:33,680 MANY OUR LIVES ARE THERE BECAUSE 5522 03:37:33,680 --> 03:37:42,680 THEY WANT TO SUPPORT US. IT 5523 03:37:42,680 --> 03:37:43,800 MEANS MUCH MORE. 5524 03:37:43,800 --> 03:37:49,200 >> JUSTIN. 5525 03:37:49,200 --> 03:37:50,600 >> FOR ME, TRUTH BE TOLD, I 5526 03:37:50,600 --> 03:37:52,680 WOULDN'T BE SITTING HERE RIGHT 5527 03:37:52,680 --> 03:37:55,000 NOW IF THE MOST IMPORTANT PERSON 5528 03:37:55,000 --> 03:37:59,400 WHICH IS MY WIFE WASN'T THERE TO 5529 03:37:59,400 --> 03:38:04,360 ADVOCATE AND HELP ME. I PROBABLY 5530 03:38:04,360 --> 03:38:05,360 WOULDN'T BE LIKE ALIVE RIGHT 5531 03:38:05,360 --> 03:38:06,800 NOW. IN DECEMBER WHEN I FOUND 5532 03:38:06,800 --> 03:38:09,280 OUT I HAD THIS HEART CONDITION I 5533 03:38:09,280 --> 03:38:11,640 HAD A DISMISSSIVENESS FROM THE 5534 03:38:11,640 --> 03:38:12,880 DOCTORS AND THEM WANTING TO RUN 5535 03:38:12,880 --> 03:38:17,000 TESTS ON ME, WHICH MEANS ONE OF 5536 03:38:17,000 --> 03:38:18,360 THOSE TESTS COULD HAVE KILLED 5537 03:38:18,360 --> 03:38:20,280 ME, INSTEAD OF LETING THAT 5538 03:38:20,280 --> 03:38:21,800 HAPPEN SHE GOT ON THE PHONE WITH 5539 03:38:21,800 --> 03:38:23,920 MAYO CLINIC AND BADGERED THEM 5540 03:38:23,920 --> 03:38:25,720 UNTIL THEY GOT ME IN HERE. I'M 5541 03:38:25,720 --> 03:38:26,800 SITTING HERE TODAY BECAUSE OF 5542 03:38:26,800 --> 03:38:29,560 THAT. IF SHE DISAPPEARED TODAY 5543 03:38:29,560 --> 03:38:33,240 MY LIFE WOULD PROBABLY LOOK LIKE 5544 03:38:33,240 --> 03:38:34,760 IT DID BEFORE I MET HER WHICH IS 5545 03:38:34,760 --> 03:38:37,320 SUBSTANCE ABUSE, MENTAL HEALTH 5546 03:38:37,320 --> 03:38:40,320 ISSUES, UNCHECKED, PROBABLY 5547 03:38:40,320 --> 03:38:41,680 WHICH WOULD THEN CAUSE ME NOT TO 5548 03:38:41,680 --> 03:38:43,960 BE ABLE TO HOLD DOWN A JOB OR 5549 03:38:43,960 --> 03:38:47,800 RUN MY COMPANY SUCCESSFULLY. SHE 5550 03:38:47,800 --> 03:38:51,600 -- EVEN JUST THE LITTLE WAYS, WE 5551 03:38:51,600 --> 03:38:53,360 MOVE IN LOCK STEP TOGETHER SHE 5552 03:38:53,360 --> 03:38:55,040 HELPS ME ORGANIZE MY EMAILS AND 5553 03:38:55,040 --> 03:38:58,720 MY SCHEDULE AND ALL THAT STUFF 5554 03:38:58,720 --> 03:39:01,880 AND WITHOUT IT, WHETHER IT WAS 5555 03:39:01,880 --> 03:39:05,040 COMBINATION OF FASD OR ADHD, 5556 03:39:05,040 --> 03:39:08,960 WHEN I'M DISORGANIZED I FALL 5557 03:39:08,960 --> 03:39:10,240 BEHIND I GET DEER IN THE HEAD 5558 03:39:10,240 --> 03:39:10,960 LIGHTS AND I. 5559 03:39:10,960 --> 03:39:13,280 NOT AS FUNCTIONAL AS I CAN BE. 5560 03:39:13,280 --> 03:39:15,280 WHICH I CAN BE VERY FUNCTIONAL, 5561 03:39:15,280 --> 03:39:19,560 I CAN DO A LOT. I'M LUCKY LIKE 5562 03:39:19,560 --> 03:39:21,440 THAT. I'M THANKFUL AND GRATEFUL 5563 03:39:21,440 --> 03:39:27,040 BUT NOT WITHOUT THE SUPPORT. I'M 5564 03:39:27,040 --> 03:39:28,960 NOTHING WITHOUT IT. SO THAT'S 5565 03:39:28,960 --> 03:39:32,040 WHERE I WOULD BE. AGAIN LIKE I 5566 03:39:32,040 --> 03:39:33,840 SAID, PROBABLY WOULDN'T BE SIT 5567 03:39:33,840 --> 03:39:35,600 HEARING IF IT WASN'T FOR HER 5568 03:39:35,600 --> 03:39:36,880 ADVOCACY AND GOING TO BAT FOR 5569 03:39:36,880 --> 03:39:37,240 ME. 5570 03:39:37,240 --> 03:39:38,800 >> WHAT YOU ARE SAYING AND I'M 5571 03:39:38,800 --> 03:39:42,440 GOING TO SPEAK TO 40 YEARS OF 5572 03:39:42,440 --> 03:39:47,600 EXPOO WORKING IN THE FIELD OF 5573 03:39:47,600 --> 03:39:49,080 FAST AND KNOWING HUNDREDS AND 5574 03:39:49,080 --> 03:39:51,080 HUNDREDS OF ADULTS WITH THE 5575 03:39:51,080 --> 03:39:52,400 DISABILITY, WHAT YOU ARE ALL 5576 03:39:52,400 --> 03:39:54,840 INDICATING IS SOMETHING THAT IS 5577 03:39:54,840 --> 03:39:57,160 A LESSON FOR SERVICES SUPPORTS 5578 03:39:57,160 --> 03:40:01,520 AND SYSTEMS. A LOT OF PEOPLE 5579 03:40:01,520 --> 03:40:03,160 PROBABLY BY PHARMA YOURTY OF 5580 03:40:03,160 --> 03:40:06,960 ADULTS WITH FASD DON'T NEED 5581 03:40:06,960 --> 03:40:09,160 MASSIVE SERVICES THAT ARE 5582 03:40:09,160 --> 03:40:10,720 EXTRAORDINARILY EXPENSIVE TO 5583 03:40:10,720 --> 03:40:12,680 FUND ALL OF A SUDDEN FOR THIS 5584 03:40:12,680 --> 03:40:14,680 HUGE GROUP OF PEOPLE. WHAT 5585 03:40:14,680 --> 03:40:16,560 SYSTEMS NEED TO FIGURE OUT IS 5586 03:40:16,560 --> 03:40:20,800 HOW TO PROVIDE KIND OF SUPPORT 5587 03:40:20,800 --> 03:40:23,160 THAT IS HARD TO REALLY QUANTIFY 5588 03:40:23,160 --> 03:40:24,720 AND QUALIFY IN A PANEL LIKE 5589 03:40:24,720 --> 03:40:27,840 THIS, BUT THAT SAYS WHEN THEY 5590 03:40:27,840 --> 03:40:29,120 NEED THE SUPPORT THEY NEED TO 5591 03:40:29,120 --> 03:40:31,800 SUPPORT. THEY NEED IT RIGHT NOW 5592 03:40:31,800 --> 03:40:34,160 FOR THIS ITEM. IT ISN'T THAT I 5593 03:40:34,160 --> 03:40:36,240 NEED TO BE AS KAT INDICATED TO 5594 03:40:36,240 --> 03:40:37,840 BE TAUGHT THINGS OVER AND OVER 5595 03:40:37,840 --> 03:40:40,440 AGAIN, BUT RIGHT AT THIS MOMENT 5596 03:40:40,440 --> 03:40:42,160 I NEED SOMEONE WHO DO WHATEVER 5597 03:40:42,160 --> 03:40:45,320 IT IS FOR ME BECAUSE MY BRAIN AT 5598 03:40:45,320 --> 03:40:46,720 THIS MOMENT IS NOT ALLOWING IT 5599 03:40:46,720 --> 03:40:49,600 TO HAPPEN. WHETHER IT IS 5600 03:40:49,600 --> 03:40:50,920 ORGANIZE, WHETHER IT IS REMEMBER 5601 03:40:50,920 --> 03:40:54,040 HOW TO VACUUM THE FLOOR, WHETHER 5602 03:40:54,040 --> 03:40:55,600 GO GROCERY SHOP -- DOESN'T 5603 03:40:55,600 --> 03:40:59,160 MATTER WHAT IT IS. AND IT IS 5604 03:40:59,160 --> 03:41:02,160 QUITE -- ALSO HAVING I SHOULD 5605 03:41:02,160 --> 03:41:03,840 ALSO SAY I HAVE PARROTED FROM -- 5606 03:41:03,840 --> 03:41:06,160 PARENTED FROM CHILDHOOD TO 5607 03:41:06,160 --> 03:41:08,160 ADULTHOOD TWO CHILDREN WITH 5608 03:41:08,160 --> 03:41:11,040 DIFFERENT DISABLES WHO ALSO HAVE 5609 03:41:11,040 --> 03:41:12,040 INTELLECTUAL DISABILITY AND THE 5610 03:41:12,040 --> 03:41:13,440 NEEDS ARE VERY DIFFERENT IN 5611 03:41:13,440 --> 03:41:14,440 ADULTHOOD IN TERMS OF WHAT 5612 03:41:14,440 --> 03:41:15,560 SUPPORTS NEED TO LOOK LIKE. I 5613 03:41:15,560 --> 03:41:19,000 THINK THEY ARE RAISING AN ISSUE 5614 03:41:19,000 --> 03:41:21,200 HERE THAT REALLY NEEDS SOME 5615 03:41:21,200 --> 03:41:22,320 THOUGHT AND CONSIDERATION. 5616 03:41:22,320 --> 03:41:25,000 BECAUSE WE HAVE A LOT OF PEOPLE 5617 03:41:25,000 --> 03:41:27,080 WITH THIS DISABILITY WHO ARE 5618 03:41:27,080 --> 03:41:28,880 ADULTS AND THEY ARE OFTEN FOUND 5619 03:41:28,880 --> 03:41:33,000 IN VERY HIGH COST SYSTEMS THAT 5620 03:41:33,000 --> 03:41:34,720 ARE REACTIVE, JAILS, ON THE 5621 03:41:34,720 --> 03:41:36,400 STREET, HOMELESSNESS, ADDICTION. 5622 03:41:36,400 --> 03:41:38,400 PLACES WHERE THEY SHOULDN'T BE 5623 03:41:38,400 --> 03:41:40,560 AND DON'T HAVE TO BE. BUT WE 5624 03:41:40,560 --> 03:41:42,680 HAVEN'T DONE AND WE DON'T THEN 5625 03:41:42,680 --> 03:41:44,360 CONTINUE TO DO THEY HAVE ALL 5626 03:41:44,360 --> 03:41:45,600 INDICATED IF THEY DIDN'T HAVE 5627 03:41:45,600 --> 03:41:48,440 PEOPLE IN THEIR LIVES AND THESE 5628 03:41:48,440 --> 03:41:50,600 ARE UNFUNDED PEOPLE BUT WHAT 5629 03:41:50,600 --> 03:41:52,360 HAPPENS IF THEY DISAPPEAR FOR 5630 03:41:52,360 --> 03:41:53,600 WHATEVER REASON? OR WHO KNOW 5631 03:41:53,600 --> 03:41:55,560 WHAT IS? BUT THAT CAN HAPPEN. SO 5632 03:41:55,560 --> 03:41:57,720 I'M GOING TO ASK EVERYBODY ON 5633 03:41:57,720 --> 03:41:58,680 THE PANEL TO TAKE CONSIDERATION 5634 03:41:58,680 --> 03:42:01,800 TO THAT. THEN I WANT TO MENTION 5635 03:42:01,800 --> 03:42:04,720 SOMETHING BECAUSE KAT HAS ASKED 5636 03:42:04,720 --> 03:42:08,080 ME OR NOT KAT, SORRY, TATIANA TO 5637 03:42:08,080 --> 03:42:09,680 MENTION SOMETHING THAT SHE AND I 5638 03:42:09,680 --> 03:42:10,840 KNOW HAVE DISCUSSED BECAUSE IT GOES BACK 5639 03:42:10,840 --> 03:42:13,160 TO THE EDUCATION PIECE. IN 5640 03:42:13,160 --> 03:42:15,880 BRITISH COLUMBIA AND THE 5641 03:42:15,880 --> 03:42:17,760 PROVIDENCE OF ALBERTA, IN PB 5642 03:42:17,760 --> 03:42:20,480 CALLED THE PROVINCIAL OUTREACH 5643 03:42:20,480 --> 03:42:24,120 PROGRAM FOR FASD AND ALBERTA 5644 03:42:24,120 --> 03:42:25,840 CALLED RAP 2 GOVERNMENT FUNDED 5645 03:42:25,840 --> 03:42:27,160 AMAJOR EDUCATION PROGRAMS FOR 5646 03:42:27,160 --> 03:42:29,280 THE SCHOOLS, WHICH ARE NOT JUST 5647 03:42:29,280 --> 03:42:32,200 THEY INVOLVE CONSULTANTS, TRAIN, 5648 03:42:32,200 --> 03:42:33,640 THEY INVOLVE ONLINE SUPPORTS 5649 03:42:33,640 --> 03:42:35,880 INVOLVE GOING INTO THE SCHOOL. 5650 03:42:35,880 --> 03:42:38,320 THEY INVOLVE HELPING SCHOOLS 5651 03:42:38,320 --> 03:42:39,560 UNDERSTAND STUDENT THEY HAVE 5652 03:42:39,560 --> 03:42:41,120 WITH FASD WHAT TO DO, HOW TO DO 5653 03:42:41,120 --> 03:42:44,480 IT AND BEING AVAILABLE TO THE 5654 03:42:44,480 --> 03:42:45,880 SCHOOL TO PROBLEM SOLVE, ET 5655 03:42:45,880 --> 03:42:47,840 CETERA. THEY ARE ALL THROUGHOUT 5656 03:42:47,840 --> 03:42:50,720 THE PROVINCE. THEY ARE VERY 5657 03:42:50,720 --> 03:42:52,200 SPECIFICALLY TARGETING HOW DO WE 5658 03:42:52,200 --> 03:42:53,800 CHANGE SCHOOL FOR CHILDREN WITH 5659 03:42:53,800 --> 03:42:55,240 FASD AND MAKE IT A BETTER 5660 03:42:55,240 --> 03:42:56,400 EXPERIENCE WHERE THEY ARE 5661 03:42:56,400 --> 03:42:57,640 LEARNING AND WHERE THEY ARE 5662 03:42:57,640 --> 03:42:59,960 HAVING SUCCESS AND NOT SEEN AS 5663 03:42:59,960 --> 03:43:03,240 QUOTE BEHAVIOR PROBLEM UNQUOTE. 5664 03:43:03,240 --> 03:43:05,840 THE WORD BEHAVIOR SHOULD BE LOST 5665 03:43:05,840 --> 03:43:07,280 FROM EVERYBODY'S VOCABULARY WHEN 5666 03:43:07,280 --> 03:43:09,080 IT COMES TO FASD BECAUSE IT IS 5667 03:43:09,080 --> 03:43:11,720 NOT BEHAVIOR. IT IS BRAIN 5668 03:43:11,720 --> 03:43:12,960 DIFFERENCE, IT IS A FUNCTIONAL 5669 03:43:12,960 --> 03:43:14,280 PROBLEM HOW THE BRAIN IS 5670 03:43:14,280 --> 03:43:18,600 PROCESSING INFORMATION. BEHAVIOR 5671 03:43:18,600 --> 03:43:20,120 IS NEVER LOOKED AT AS A POSITIVE 5672 03:43:20,120 --> 03:43:22,280 THING. WE DON'T TALK ABOUT GOOD 5673 03:43:22,280 --> 03:43:23,520 BEHAVIOR, WE ARE TALKING ALL 5674 03:43:23,520 --> 03:43:25,120 THESE THINGS WITH PEOPLE WITH 5675 03:43:25,120 --> 03:43:26,800 FASD, IT IS ALWAYS BAD BEHAVIOR. 5676 03:43:26,800 --> 03:43:28,200 SO SHE ASKED THAT I MENTION THAT 5677 03:43:28,200 --> 03:43:30,600 BECAUSE THAT IS A SYSTEM WIDE 5678 03:43:30,600 --> 03:43:32,520 CHANGE PROVINCES OF BC AND 5679 03:43:32,520 --> 03:43:36,080 ALBERTA PUT IN PLACE. AND THEY 5680 03:43:36,080 --> 03:43:37,400 HAVE BEEN IN PLACE QUITE A FEW 5681 03:43:37,400 --> 03:43:39,080 YEARS, THEY STARTED AS PILOT 5682 03:43:39,080 --> 03:43:41,200 PROJECTS. THEY WERE SO EFFECTIVE 5683 03:43:41,200 --> 03:43:43,000 THEY BECAME PROVINCIAL 5684 03:43:43,000 --> 03:43:44,880 GOVERNMENT WHAT WE CALL MINISTRY 5685 03:43:44,880 --> 03:43:46,360 OF EDUCATION WHICH IS EQUIVALENT 5686 03:43:46,360 --> 03:43:47,440 TO WHATEVER THE STATE DEPARTMENT 5687 03:43:47,440 --> 03:43:49,520 WOULD BE OR THE FEDERAL 5688 03:43:49,520 --> 03:43:52,160 DEPARTMENT. AND THEY HAVE MADE 5689 03:43:52,160 --> 03:43:54,120 REALLY SIGNIFICANT DIFFERENCE. 5690 03:43:54,120 --> 03:43:55,920 IF YOU TALK AGAIN THAT 5691 03:43:55,920 --> 03:43:57,000 INTERVENTION IS PREVENTION AND 5692 03:43:57,000 --> 03:43:58,560 DOING THAT AT ALL DIFFERENT 5693 03:43:58,560 --> 03:44:02,000 LEVELS, IF YOU DO IT IN ENOUGH 5694 03:44:02,000 --> 03:44:03,800 PLACES, ALL THOSE PIECES BEGIN 5695 03:44:03,800 --> 03:44:05,600 TO COME TOGETHER AND ACTUAL 5696 03:44:05,600 --> 03:44:07,440 CHANGE STARTS TO HAPPEN. 5697 03:44:07,440 --> 03:44:09,120 CERTAINLY IN B.C. A WHOLE BUNCH 5698 03:44:09,120 --> 03:44:10,720 OF THOSE THINGS HAVE HAPPENED 5699 03:44:10,720 --> 03:44:13,120 THE LAST 20 YEARS AND THEY HAVE 5700 03:44:13,120 --> 03:44:14,680 SLOWLILY COALESCED AND COME 5701 03:44:14,680 --> 03:44:18,680 TOGETHER WHERE YOU HAVE A 5702 03:44:18,680 --> 03:44:19,240 PROVINCE-WIDE AWARENESS, 5703 03:44:19,240 --> 03:44:22,480 KNOWLEDGE, EDUCATION, SUPPORT. 5704 03:44:22,480 --> 03:44:23,560 UNDERSTANDING ON A LEVEL THAT 5705 03:44:23,560 --> 03:44:25,280 DOES ALLOW THINGS TO DO 5706 03:44:25,280 --> 03:44:26,840 DIFFERENTLY. IT'S MOVED IN ALL 5707 03:44:26,840 --> 03:44:28,480 OF OUR SYSTEMS FROM A GOVERNMENT 5708 03:44:28,480 --> 03:44:32,440 FUNDING LEVEL. I WILL THROW 5709 03:44:32,440 --> 03:44:35,160 SOMETHING OUT THAT OUR 5710 03:44:35,160 --> 03:44:36,920 PROVINCIAL GOVERNMENT IN APRIL, 5711 03:44:36,920 --> 03:44:38,480 KAT YOU WILL BE AWARE OF THIS, 5712 03:44:38,480 --> 03:44:41,440 HAS SOME EXTRA MONEY WITHIN OUR 5713 03:44:41,440 --> 03:44:43,000 CHILD PROTECTION FIELD AND WHAT 5714 03:44:43,000 --> 03:44:46,040 THEY HAVE CHOSE TO DO WITH THAT 5715 03:44:46,040 --> 03:44:48,400 MONEY WAS TO TELL EVERY 5716 03:44:48,400 --> 03:44:49,320 ADVERTISE -- EVERY FAMILY IN THE 5717 03:44:49,320 --> 03:44:51,000 PROVINCE WHO HAD A CHILD FROM 5718 03:44:51,000 --> 03:44:53,600 BIRTH TO 19 WITH FASD WE ARE 5719 03:44:53,600 --> 03:44:55,080 GOING TO DO A DRAW FOR THIS, 5720 03:44:55,080 --> 03:44:56,360 JUST APPLY ONLINE FOR IT AND YOU 5721 03:44:56,360 --> 03:44:58,680 CAN HAVE A DRAW AND YOU WILL GET 5722 03:44:58,680 --> 03:45:00,840 $6,000 TO USE FOR YOUR CHILD AS 5723 03:45:00,840 --> 03:45:02,280 YOU SEE FIT. WE ARE NOT 5724 03:45:02,280 --> 03:45:04,360 GOING TO TELL YOU HOW TO SPEND 5725 03:45:04,360 --> 03:45:06,120 IT WE NOT GOING TO TELL YOU WHAT 5726 03:45:06,120 --> 03:45:07,880 TO DO WITH IT OR DEMAND 5727 03:45:07,880 --> 03:45:09,760 RECEIPTS. WE WILL WILL TRUST AS 5728 03:45:09,760 --> 03:45:12,400 A PARENT YOU KNOW WHAT YOU ARE 5729 03:45:12,400 --> 03:45:14,400 DOING. SO 400 FAMILIES RECEIVED 5730 03:45:14,400 --> 03:45:18,880 A GRANT OF $6,000 EACH. THAT WAS 5731 03:45:18,880 --> 03:45:22,120 A COMPLETELY NOVEL CONCEPT ABOUT 5732 03:45:22,120 --> 03:45:23,480 SAY PEOPLE NEED MENTAL HEALTH 5733 03:45:23,480 --> 03:45:24,880 SUPPORTS THAT COST MONEY, THEY 5734 03:45:24,880 --> 03:45:26,760 NEED MEDICAL CARE, PEOPLE 5735 03:45:26,760 --> 03:45:29,680 ALLUDED TO THAT COST MONEY. THEY 5736 03:45:29,680 --> 03:45:31,120 NEED JOB COACH, ALL KIND OF 5737 03:45:31,120 --> 03:45:31,800 THINGS YOU MAY NOT HAVE 5738 03:45:31,800 --> 03:45:35,360 AVAILABLE. BUT WHAT THEY DID 5739 03:45:35,360 --> 03:45:36,920 HERE WAS JUST SAY EVENINGS TRAY 5740 03:45:36,920 --> 03:45:40,240 FUND, LET'S DO IT AND SEE' EXTRA 5741 03:45:40,240 --> 03:45:41,360 FUNDS. THERE ARE NOVEL THINGS 5742 03:45:41,360 --> 03:45:43,080 HAPPENING IN OTHER PLACES OUTS 5743 03:45:43,080 --> 03:45:43,640 THERE. MENTORING IS ANOTHER 5744 03:45:43,640 --> 03:45:47,000 ISSUE. WE DO HAVE MENTORS HERE, 5745 03:45:47,000 --> 03:45:49,160 THEY ARE TRAINED. PROVINCE OF 5746 03:45:49,160 --> 03:45:51,400 ONTARIO IS SET UP A MENTORING 5747 03:45:51,400 --> 03:45:52,760 PROGRAM WHERE THEY JUST HIRED 5748 03:45:52,760 --> 03:45:55,520 THEIR FIRST SIX MENTORS IN THE 5749 03:45:55,520 --> 03:45:58,200 ADOPT FOR LIFE PROGRAM. WHERE 5750 03:45:58,200 --> 03:45:59,640 THEY GOING TO RECEIVE 60 HOURS 5751 03:45:59,640 --> 03:46:00,760 OF TRAINING AND THEN THEY ARE 5752 03:46:00,760 --> 03:46:03,520 GOING TO WORK AS MENTORS UNDER 5753 03:46:03,520 --> 03:46:05,280 CLINICAL SUPERVISION WITH NOVEL 5754 03:46:05,280 --> 03:46:08,160 CONCEPT THAT PEOPLE WORKING WITH 5755 03:46:08,160 --> 03:46:09,160 MENTORS SHOULD HAVE PROPER 5756 03:46:09,160 --> 03:46:10,960 SUPERVISION BECAUSE THEY SHOULD. 5757 03:46:10,960 --> 03:46:11,600 THERE THERE ARE THINGS BEGINNING 5758 03:46:11,600 --> 03:46:13,800 TO HAPPEN THAT SAY NOBODY HAS TO 5759 03:46:13,800 --> 03:46:15,680 REINVENT THE WHEEL. EVERYBODY 5760 03:46:15,680 --> 03:46:16,920 IS LOOKING OUT THERE WHAT IS 5761 03:46:16,920 --> 03:46:18,200 GOING ON SAYING WHY DON'T WE 5762 03:46:18,200 --> 03:46:20,600 JUST DO THIS. KAT MENTIONED 5763 03:46:20,600 --> 03:46:21,920 MENTORING. THAT IS REALLY 5764 03:46:21,920 --> 03:46:25,000 IMPORTANT. MAKES A HUGE 5765 03:46:25,000 --> 03:46:25,680 DIFFERENCE. I DON'T KNOW IF ANY 5766 03:46:25,680 --> 03:46:28,200 OF THE REST OF YOU HAD 5767 03:46:28,200 --> 03:46:31,080 MENTORING, KATHY I KNOW SASHA 5768 03:46:31,080 --> 03:46:33,200 HAS BUT I KNOW KAT YOU HAD 5769 03:46:33,200 --> 03:46:34,480 FOR YEARS THAT IT MAKES A 5770 03:46:34,480 --> 03:46:36,040 DIFFERENCE, IT IS NOT A COSTLY 5771 03:46:36,040 --> 03:46:38,560 PROGRAM TO SET UP. IT CAN BE 5772 03:46:38,560 --> 03:46:40,480 FIGURED OUT AND DONE WITHIN 5773 03:46:40,480 --> 03:46:45,440 EXISTING SYSTEMS OR EXISTING 5774 03:46:45,440 --> 03:46:47,360 FASD UNITED AFFILIATES TO SAY 5775 03:46:47,360 --> 03:46:49,600 THESE ARE THINGS THAT MAKE A 5776 03:46:49,600 --> 03:46:51,000 DIFFERENCE, THE CONTACT WITH 5777 03:46:51,000 --> 03:46:52,320 OTHERS BECAUSE THAT -- WHEN WE 5778 03:46:52,320 --> 03:46:53,560 TALKED ABOUT THIS THE 5779 03:46:53,560 --> 03:46:56,120 STEREOTYPING THAT BEGINS TO 5780 03:46:56,120 --> 03:46:58,120 CHANGE HOW THAT IS SEEN BY 5781 03:46:58,120 --> 03:46:59,960 PEOPLE WITH FASD BECAUSE THEY 5782 03:46:59,960 --> 03:47:01,200 NEED TO LOOK AT THIS DIFFERENTLY 5783 03:47:01,200 --> 03:47:03,720 AND SEE THEMSELVES AS 5784 03:47:03,720 --> 03:47:04,360 FUNCTIONING, COMPETENT 5785 03:47:04,360 --> 03:47:07,880 INDIVIDUALS. AND NOT AS PEOPLE 5786 03:47:07,880 --> 03:47:10,720 WHO ARE PROBLEMS. BECAUSE YOU 5787 03:47:10,720 --> 03:47:12,560 NEED -- THAT NEEDS TO CHANGE. I 5788 03:47:12,560 --> 03:47:14,800 KNOW THAT -- I THINK WE ARE 5789 03:47:14,800 --> 03:47:17,280 PROBABLY CLOSE TO TATIANA, 5790 03:47:17,280 --> 03:47:19,200 CORRECT ME IF WRONG, ABOUT READY 5791 03:47:19,200 --> 03:47:21,200 TO MOVE ON, BUT I SEE ANOTHER 5792 03:47:21,200 --> 03:47:25,080 THING THE ADDRESS BUT ONE OF THE 5793 03:47:25,080 --> 03:47:27,880 SENIOR DIAGNOSTIC POSITIONS IN 5794 03:47:27,880 --> 03:47:30,160 THE PROVINCE OF BRITISH 5795 03:47:30,160 --> 03:47:32,400 COLUMBIA, WHEN SHE DIAGNOSED 5796 03:47:32,400 --> 03:47:34,240 OLDER KIDS, TEENS AN ADULTS 5797 03:47:34,240 --> 03:47:35,240 TRACKS THE COMMENTS BECAUSE 5798 03:47:35,240 --> 03:47:36,640 THERE'S A WHOLE SESSION THEIR 5799 03:47:36,640 --> 03:47:38,200 DIAGNOSIS IS EXPLAINED WHAT IT 5800 03:47:38,200 --> 03:47:40,480 MEANS, WHAT IT DOESN'T MEAN. AND 5801 03:47:40,480 --> 03:47:42,200 THE MOST COMMON COMMENT FROM ALL 5802 03:47:42,200 --> 03:47:44,320 OF THE TEENS AND ADULTS WAS, 5803 03:47:44,320 --> 03:47:45,960 THIS SPEAKS TO WHAT I'M TALKING 5804 03:47:45,960 --> 03:47:49,040 ABOUT, YOU MEAN IT ISN'T ME? I'M 5805 03:47:49,040 --> 03:47:51,560 NOT BAD? I'M NOT STUPID? THOSE 5806 03:47:51,560 --> 03:47:53,120 WERE THE TWO MOST COMMON 5807 03:47:53,120 --> 03:47:54,920 COMMENTS. BECAUSE WITH -- 5808 03:47:54,920 --> 03:47:56,400 WITHOUT EVER MEANING TO, THAT IS 5809 03:47:56,400 --> 03:47:57,920 WHAT THEY ARE INTERNALIZING 5810 03:47:57,920 --> 03:47:59,400 LARGE NUMBERS OF THEM WHO DON'T 5811 03:47:59,400 --> 03:48:01,920 GET SUPPORTS AND SERVICES. THEY 5812 03:48:01,920 --> 03:48:03,160 INTERNALIZE THEY ARE A PROBLEM. 5813 03:48:03,160 --> 03:48:05,600 THEY ARE BAD BAD. THEY ARE LESS 5814 03:48:05,600 --> 03:48:07,800 THAN. AND THAT NEEDS TO CHANGE, 5815 03:48:07,800 --> 03:48:10,840 YOU WANT TO TALK AGAIN CHANGING 5816 03:48:10,840 --> 03:48:13,320 THAT WHOLE DIALOGUE AND THAT IS 5817 03:48:13,320 --> 03:48:14,120 PREVENTION AND INTERVENTION 5818 03:48:14,120 --> 03:48:20,240 PIECE. HOW DOES SUPPORTS IN BC 5819 03:48:20,240 --> 03:48:22,600 FOR PEOPLE WITH FASD DIFFER FROM 5820 03:48:22,600 --> 03:48:25,000 OTHER PROVINCES IN CANADA? IN 5821 03:48:25,000 --> 03:48:27,200 OTHER WORDS IS IT PROVINCIAL 5822 03:48:27,200 --> 03:48:28,400 PROGRAMS OR FEDERAL SYSTEMS 5823 03:48:28,400 --> 03:48:30,520 MAKING THE DIFFERENCE? ANYONE 5824 03:48:30,520 --> 03:48:32,120 DONE COMPARATIVE POLICIES 5825 03:48:32,120 --> 03:48:33,240 RESEARCH ON FASD BETWEEN CANADA 5826 03:48:33,240 --> 03:48:35,280 AND THE U.S.? THE PROVINCES IN 5827 03:48:35,280 --> 03:48:38,040 CANADA SET UP THEIR OWN SYSTEMS. 5828 03:48:38,040 --> 03:48:39,680 THE FEDERAL GOVERNMENT ALLOCATES 5829 03:48:39,680 --> 03:48:41,840 FUNDS TO EACH PROVINCE THEY CAN 5830 03:48:41,840 --> 03:48:44,200 USE AS SEE FIT WITHIN ALL THE 5831 03:48:44,200 --> 03:48:45,560 DIFFERENT SYSTEMS. BUT THE 5832 03:48:45,560 --> 03:48:48,400 FEDERAL GOVERNMENT HAS ALSO SET 5833 03:48:48,400 --> 03:48:51,040 UP SOME PROGRAMS IF I CAN CALL 5834 03:48:51,040 --> 03:48:54,600 THEM THAT, WHERE IN FOR INSTANCE 5835 03:48:54,600 --> 03:48:57,160 FASD IS A RECOGNIZED DISABILITY 5836 03:48:57,160 --> 03:48:59,320 IN CANADA, SO THE FEDERAL 5837 03:48:59,320 --> 03:49:02,000 GOVERNMENT HAS WHAT ARE CALLED 5838 03:49:02,000 --> 03:49:03,600 DISABILITY TAX CREDITS, FASD 5839 03:49:03,600 --> 03:49:05,920 QUALIFIES FOR IT AUTOMATICALLY. 5840 03:49:05,920 --> 03:49:07,800 THEY HAVE REGISTERED DISABILITY 5841 03:49:07,800 --> 03:49:11,320 SAVINGS PLANS THAT ARE MANAGED 5842 03:49:11,320 --> 03:49:14,000 FEDERALLY. ANYBODY WITH FASD 5843 03:49:14,000 --> 03:49:16,040 QUALIFIES FOR ONE. IF ONE SHOULD 5844 03:49:16,040 --> 03:49:17,720 APPLY FOR THAT AND YOU ARE 5845 03:49:17,720 --> 03:49:19,280 APPROVED THE GOVERNMENT PUTS 5846 03:49:19,280 --> 03:49:22,000 $500 A YEAR INTO THAT ACCOUNT 5847 03:49:22,000 --> 03:49:23,600 FOR THAT PERSON WITH FASD. IF 5848 03:49:23,600 --> 03:49:25,800 THE FAMILY CAN PUT MONEY IN AS 5849 03:49:25,800 --> 03:49:27,560 WELL, THE GOVERNMENT MATCHES OR 5850 03:49:27,560 --> 03:49:29,840 DOUBLES THAT MONEY UP TO 5851 03:49:29,840 --> 03:49:33,200 $70,000. IT IS LOOKING AT FROM 5852 03:49:33,200 --> 03:49:35,840 MULTIPLE LEVELS ABOUT WHAT ARE 5853 03:49:35,840 --> 03:49:37,640 THE THINGS IN YOUR CASE STATES 5854 03:49:37,640 --> 03:49:39,600 CAN DO, LOCAL CAN DO, STATES CAN 5855 03:49:39,600 --> 03:49:42,360 DO, FEDERALLY CAN DO THAT CAN 5856 03:49:42,360 --> 03:49:46,880 MAKE A DIFFERENCE OVER TIME FOR 5857 03:49:46,880 --> 03:49:48,840 PEOPLE WITH FASD BECAUSE IT 5858 03:49:48,840 --> 03:49:50,480 ISN'T A ONE SOLUTION. THERE IS 5859 03:49:50,480 --> 03:49:51,760 MANY DIFFERENT THINGS THAT CAN 5860 03:49:51,760 --> 03:49:53,720 HAPPEN, WHEN YOU HAVE ALL THESE 5861 03:49:53,720 --> 03:49:55,360 LITTLE THINGS YOU SAY THAT'S A 5862 03:49:55,360 --> 03:49:56,720 SMALL PROGRAM HERE AND SMALL 5863 03:49:56,720 --> 03:49:58,640 PROGRAM HERE, YES BUT IF 5864 03:49:58,640 --> 03:50:00,200 EVERYBODY IS DOING THEM AND THEY 5865 03:50:00,200 --> 03:50:02,320 BEGIN TO COALESCE SO A MUCH 5866 03:50:02,320 --> 03:50:04,920 BIGGER THING, AS IN MANY PLACES 5867 03:50:04,920 --> 03:50:06,320 THE AUTISM HAS BEEN ABLE TO DO 5868 03:50:06,320 --> 03:50:08,760 SOME OF THIS, IF WE LOOK AT 5869 03:50:08,760 --> 03:50:14,400 THAT, IT MAKES A DIFFERENCE. 5870 03:50:14,400 --> 03:50:16,080 SORRY, I HAVEN'T SEEN A HAND UP 5871 03:50:16,080 --> 03:50:18,680 HERE IT IS NOT SHOWING UP ON MY 5872 03:50:18,680 --> 03:50:19,480 SCREEN. 5873 03:50:19,480 --> 03:50:21,360 >> TWO HANDS AND ALSO WANTED TO 5874 03:50:21,360 --> 03:50:26,000 TELL YES, WE NEED TO COME IN ON 5875 03:50:26,000 --> 03:50:26,400 TIME. 5876 03:50:26,400 --> 03:50:27,720 >> WE SHOULD BE OVER TIME THAT 5877 03:50:27,720 --> 03:50:29,000 IS WHAT I'M THINKING. 5878 03:50:29,000 --> 03:50:30,320 >> WOULD YOU LIKE TO MAKE YOUR 5879 03:50:30,320 --> 03:50:33,520 COMMENT? 5880 03:50:33,520 --> 03:50:40,160 >> SURE. I'M TRACY KING NICHD. 5881 03:50:40,160 --> 03:50:40,720 I'M SO APPRECIATIVE OF EVERYONE'S 5882 03:50:40,720 --> 03:50:42,760 COMMENTS BUT ONE THING I THINK 5883 03:50:42,760 --> 03:50:47,240 THAT REALLY STRUCK ME FIRST WITH 5884 03:50:47,240 --> 03:50:50,200 KATHY HOTELLING'S COMMENT HOW 5885 03:50:50,200 --> 03:50:52,400 BEING FROM A HIGH RESOURCE 5886 03:50:52,400 --> 03:50:53,640 SETTING REALLY MADE A DIFFERENCE 5887 03:50:53,640 --> 03:50:55,640 AND LISTENING TO YOU ALL TALK 5888 03:50:55,640 --> 03:50:58,160 ABOUT YOUR VERY STRONG SUPPORT 5889 03:50:58,160 --> 03:51:00,640 SYSTEMS, I GUESS SOMETHING THAT 5890 03:51:00,640 --> 03:51:04,400 I HAVE BEEN THINKING ABOUT IS 5891 03:51:04,400 --> 03:51:06,960 WHO IS NOT REPRESENTED ON THIS 5892 03:51:06,960 --> 03:51:09,320 PANEL AND WHO IS NOT REPRESENTED 5893 03:51:09,320 --> 03:51:13,400 IN THE SERVICES THAT YOU ALL ARE 5894 03:51:13,400 --> 03:51:17,680 ABLE TO ACCESS. I GUESS IT IS 5895 03:51:17,680 --> 03:51:20,240 NOT SO MUCH A QUESTION THAT 5896 03:51:20,240 --> 03:51:21,560 NEEDS A RESPONSE. I THINK IT IS 5897 03:51:21,560 --> 03:51:23,200 POSSIBLE THAT THE NEXT SESSION 5898 03:51:23,200 --> 03:51:25,120 ON FAMILY NAVIGATORS MIGHT A I 5899 03:51:25,120 --> 03:51:27,320 DRESS THIS BUT I'M ALSO STRUCK 5900 03:51:27,320 --> 03:51:29,240 THAT THIS PANEL, CERTAINLY 5901 03:51:29,240 --> 03:51:30,480 GUILTY OF THIS, NOT A 5902 03:51:30,480 --> 03:51:32,080 PARTICULARLY DIVERSE PANEL AND 5903 03:51:32,080 --> 03:51:35,440 SO I'M HOPEFUL THAT AS WE MOVE 5904 03:51:35,440 --> 03:51:37,880 FORWARD WE CAN THINK ABOUT THAT 5905 03:51:37,880 --> 03:51:42,760 AS WE TRY TO INCREASE OUR 5906 03:51:42,760 --> 03:51:43,640 OUTREACH TO THE FASD COMMUNITY. 5907 03:51:43,640 --> 03:51:46,960 >> CAN I SAY IN RESPONSE THAT 5908 03:51:46,960 --> 03:51:48,120 THAT SINCE YOU MENTIONED ME, THE 5909 03:51:48,120 --> 03:51:50,560 ISSUE THAT I HAVE HAD ON MY SIDE 5910 03:51:50,560 --> 03:51:54,040 IS TIME. THE ABILITY TO QUOTE 5911 03:51:54,040 --> 03:51:55,760 UNQUOTE RETIRE WAY BEFORE I 5912 03:51:55,760 --> 03:51:57,640 WANTED TO, AND THE FINANCIAL 5913 03:51:57,640 --> 03:51:59,600 MEANS TO DO THAT. BUT I HAD THE 5914 03:51:59,600 --> 03:52:02,400 TIME TO LOOK FOR ALL OF THESE 5915 03:52:02,400 --> 03:52:04,320 PROGRAMS. AND IT TOOK HOURS AND 5916 03:52:04,320 --> 03:52:08,040 HOURS AND HOURS. THAT'S WHY I 5917 03:52:08,040 --> 03:52:10,840 STARTED NCFASD INFORMED IS TO 5918 03:52:10,840 --> 03:52:11,960 SHARE THAT INFORMATION BECAUSE 5919 03:52:11,960 --> 03:52:13,360 PEOPLE DON'T HAVE THE PRIVILEGE 5920 03:52:13,360 --> 03:52:15,920 THAT I HAVE HAD OF TIME ALONE 5921 03:52:15,920 --> 03:52:18,800 AND I -- IT IS SO IMPORTANT. 5922 03:52:18,800 --> 03:52:20,600 THANK YOU. 5923 03:52:20,600 --> 03:52:24,800 >> THANK YOU. BILL. 5924 03:52:24,800 --> 03:52:29,320 >> TATIANA, I WANTED TO 5925 03:52:29,320 --> 03:52:30,640 ACKNOWLEDGE THAT THERE WERE 5926 03:52:30,640 --> 03:52:32,640 SEVERAL PUBLIC COMMENTS MADE IN 5927 03:52:32,640 --> 03:52:34,160 THE CHAT. THANKING THE PANELIST 5928 03:52:34,160 --> 03:52:38,880 FOR SHARING THEIR EXPERIENCES 5929 03:52:38,880 --> 03:52:40,400 BOTH CHALLENGES AND STRENGTHSES. 5930 03:52:40,400 --> 03:52:43,160 AND MANY OF THE STORIES ECHOED 5931 03:52:43,160 --> 03:52:45,640 SOME OF THE STORIES WERE HEARD 5932 03:52:45,640 --> 03:52:47,440 THIS AFTERNOON. BY THE 5933 03:52:47,440 --> 03:52:49,440 PANELISTS, NEED FOR SERVICES 5934 03:52:49,440 --> 03:52:51,360 SUPPORT, BETTER UNDERSTANDING OF 5935 03:52:51,360 --> 03:52:53,240 THE CONDITION. AND SO I DO WANT 5936 03:52:53,240 --> 03:52:54,800 TO LET THE PUBLIC KNOW WE WILL 5937 03:52:54,800 --> 03:52:57,200 BE SHARING THOSE STORIES 5938 03:52:57,200 --> 03:53:00,240 OFFLINE. WITH THE PANELISTS 5939 03:53:00,240 --> 03:53:03,520 WITH OUR AGENCY MEMBERS. 5940 03:53:03,520 --> 03:53:05,440 >> BILL, I WANT TO SAY SOMETHING 5941 03:53:05,440 --> 03:53:08,440 TO TRACY. BECAUSE SOMETHING I 5942 03:53:08,440 --> 03:53:10,120 HAVEN'T MENTIONED YOUR POINT IS 5943 03:53:10,120 --> 03:53:12,240 REALLY WELL TAKEN BUT THE 5944 03:53:12,240 --> 03:53:14,920 PROVINCE OF BC ALSO HAS A KEY 5945 03:53:14,920 --> 03:53:16,480 WORKER PROGRAM, COUPLE OF OTHER 5946 03:53:16,480 --> 03:53:18,480 PROVINCES DO AS WELL SPECIFIC 5947 03:53:18,480 --> 03:53:20,240 SERVICE DIRECT SERVICE FOR 5948 03:53:20,240 --> 03:53:22,040 FAMILIES WITH FASD SERVING A 5949 03:53:22,040 --> 03:53:24,320 GREAT MANY DISADVANTAGED 5950 03:53:24,320 --> 03:53:29,400 FAMILIES AND THAT'S AN ISSUE 5951 03:53:29,400 --> 03:53:31,920 BECAUSE CHILDREN IN FOSTER CARE, 5952 03:53:31,920 --> 03:53:33,640 CHILDREN IN ISOLATED COMMUNITIES 5953 03:53:33,640 --> 03:53:34,760 CHILDREN WHO COME FROM FAMILIES 5954 03:53:34,760 --> 03:53:36,760 THAT STRUGGLE WITH THOSE 5955 03:53:36,760 --> 03:53:38,680 DISABLES NEVER GET HEARD. BUT TO 5956 03:53:38,680 --> 03:53:40,800 BE PUBLICLY HEARD PUTS THEM AT 5957 03:53:40,800 --> 03:53:44,200 RISK IN MANY PLACES. BY WHAT WE 5958 03:53:44,200 --> 03:53:46,760 HAVE DONE WITH THE PROVINCIAL -- 5959 03:53:46,760 --> 03:53:49,320 KEY WORKER PROGRAM IS TRY IN BC 5960 03:53:49,320 --> 03:53:52,520 TRY TO BRING THOSE FAMILIES IN. 5961 03:53:52,520 --> 03:53:55,080 AND THE REPRESENTATIVE FOR 5962 03:53:55,080 --> 03:53:57,560 CHILDREN AND YOUTH IN BC 5963 03:53:57,560 --> 03:53:59,880 PROVINCIAL CHILD ADVOCATE BUT 5964 03:53:59,880 --> 03:54:01,200 EX-OFFICIO GOVERNMENT SO HAS 5965 03:54:01,200 --> 03:54:03,120 VERY SIGNIFICANT POWER HERE, 5966 03:54:03,120 --> 03:54:04,560 JUST DID A REPORT A YEAR AGO 5967 03:54:04,560 --> 03:54:07,440 CALLED EXCLUDED ABOUT CHILDREN 5968 03:54:07,440 --> 03:54:09,320 IN THE CARE SYSTEM WITH FASD AND 5969 03:54:09,320 --> 03:54:10,760 HOW THEIR VOICES AREN'T HEARD. 5970 03:54:10,760 --> 03:54:13,640 AND WHAT NEED TO CHANGE. IT'S 5971 03:54:13,640 --> 03:54:16,480 BEEN MANDATING CHANGE WITHIN 5972 03:54:16,480 --> 03:54:18,080 GOVERNMENT TO BRING THEM IN AND 5973 03:54:18,080 --> 03:54:21,120 TO HAVE THEM BETTER SERVED AND 5974 03:54:21,120 --> 03:54:22,520 UNDERSTOOD AND BROUGHT SOME OF 5975 03:54:22,520 --> 03:54:24,640 THEM TO A MEETING WITH 5976 03:54:24,640 --> 03:54:26,760 GOVERNMENT A YEAR AGO IN 5977 03:54:26,760 --> 03:54:30,320 VICTORIA TO TALK DIRECTLY. SO 5978 03:54:30,320 --> 03:54:30,960 YOUR POINT IS THIS IS SO 5979 03:54:30,960 --> 03:54:31,840 IMPORTANT. 5980 03:54:31,840 --> 03:54:35,600 >> THANK YOU SO MUCH. THANK YOU 5981 03:54:35,600 --> 03:54:37,600 AND ALL PRESENTERS. THANK YOU SO 5982 03:54:37,600 --> 03:54:38,560 MUCH FOR YOUR WONDERFUL 5983 03:54:38,560 --> 03:54:41,800 PRESENTATIONS. YOU GIVE US VERY 5984 03:54:41,800 --> 03:54:46,080 IMPORTANT INFORMATION. WE DO 5985 03:54:46,080 --> 03:54:47,480 HAVE ALL CONTACTS AND YOU HAVE 5986 03:54:47,480 --> 03:54:50,920 OUR CONTACTS. I HOPE THIS 5987 03:54:50,920 --> 03:54:52,760 DISCUSSION CAN CONTINUE BY EMAIL 5988 03:54:52,760 --> 03:54:56,720 AND WE WILL BE IN TOUCH AND EACH 5989 03:54:56,720 --> 03:54:58,000 CAN COMMUNICATE AND CONTACT YOU 5990 03:54:58,000 --> 03:55:01,760 AND YOU FEEL FREE TO CONTACT US 5991 03:55:01,760 --> 03:55:03,720 WE ALSO HAVE MORE TIME FOR 5992 03:55:03,720 --> 03:55:08,640 DISCUSSION LATER AFTER THE BREAK 5993 03:55:08,640 --> 03:55:09,880 IN AFTERNOON SESSION. SAVE YOUR 5994 03:55:09,880 --> 03:55:11,000 QUESTIONS, WE WILL HAVE 5995 03:55:11,000 --> 03:55:16,400 ADDITIONAL TIME. AS KAT SAID IT 5996 03:55:16,400 --> 03:55:18,720 WOULDN'T BE HARD TO DO, YOU GIVE 5997 03:55:18,720 --> 03:55:19,640 VERY IMPORTANT INFORMATION. 5998 03:55:19,640 --> 03:55:22,000 THANK YOU, PLEASE SAVE YOUR 5999 03:55:22,000 --> 03:55:24,200 QUESTIONS. WE WILL BE BACK IN 6000 03:55:24,200 --> 03:55:29,600 FOUR MINUTES. 2:30 WE WILL 6001 03:55:29,600 --> 03:55:38,000 CONTINUE NEXT SESSION. 6002 03:55:38,000 --> 03:55:39,480 >>THANK YOU SO 6003 03:55:39,480 --> 03:55:42,440 MUCH TO ALL PANELS SPEAKERS WE 6004 03:55:42,440 --> 03:55:44,680 HAD EXCELLENT PANEL, IT WAS 6005 03:55:44,680 --> 03:55:47,320 ACTUALLY VERY DIVERSE PANEL. WE 6006 03:55:47,320 --> 03:55:52,120 KNOW THIS BUT WE ALSO KNOW THAT 6007 03:55:52,120 --> 03:55:53,400 THERE ARE MANY MORE PEOPLE WITH 6008 03:55:53,400 --> 03:55:54,960 FASD AND FAMILIES WHO HAVEN'T 6009 03:55:54,960 --> 03:55:58,560 BEEN REPRESENTED. AND MANY MORE 6010 03:55:58,560 --> 03:56:00,480 WE CANNOT NECESSARILY REACH. SO 6011 03:56:00,480 --> 03:56:05,680 WE WILL CONTINUE THIS WORK. WITH 6012 03:56:05,680 --> 03:56:08,080 THIS PANEL, PART TWO OF OUR 6013 03:56:08,080 --> 03:56:10,200 PANEL WE ARE DELIGHTED TO HAVE 6014 03:56:10,200 --> 03:56:13,880 SPECIAL GUESTINGS WHO WILL TELL 6015 03:56:13,880 --> 03:56:17,440 US ABOUT A NEW PROGRAM DEVELOPED 6016 03:56:17,440 --> 03:56:20,880 BY FASD UNITED. SPECIFICALLY TO 6017 03:56:20,880 --> 03:56:25,320 HELP FAMILIES WITH FASD WITH 6018 03:56:25,320 --> 03:56:26,520 SUPPORTS AND SERVICES THEY NEED. 6019 03:56:26,520 --> 03:56:29,200 THE PROGRAM IS CALLED FAMILY 6020 03:56:29,200 --> 03:56:31,040 NAVIGATOR, IT WAS DEVELOPED 6021 03:56:31,040 --> 03:56:36,200 ABOUT ONE YEAR AGO WITH SUPPORT 6022 03:56:36,200 --> 03:56:42,040 FROM A GRANT FROM CDC. DR. 6023 03:56:42,040 --> 03:56:44,800 ELIZABETH CDC AGREED TO MODERATE 6024 03:56:44,800 --> 03:56:47,120 THIS PANEL, SHE IS A CDC 6025 03:56:47,120 --> 03:56:52,320 COMMUNITY REPRESENTATIVE TO 6026 03:56:52,320 --> 03:56:54,440 ICCFASD. HER BIOSKETCH IS 6027 03:56:54,440 --> 03:56:55,920 AVAILABLE ONLINE, I DON'T NEED 6028 03:56:55,920 --> 03:56:57,360 TO TELL MORE BECAUSE SHE HAS 6029 03:56:57,360 --> 03:56:59,160 EXPERIENCES AND WE ARE HAPPY SHE 6030 03:56:59,160 --> 03:57:07,400 AGREED TO MODERATE THIS PANEL. 6031 03:57:07,400 --> 03:57:09,800 SHE WILL INTRODUCE PANEL 6032 03:57:09,800 --> 03:57:10,040 SPEAKERS. 6033 03:57:10,040 --> 03:57:12,000 >> THANK YOU, TATIANA, I'M 6034 03:57:12,000 --> 03:57:14,400 PLEASED TO INTRODUCE YOU ARE OUR 6035 03:57:14,400 --> 03:57:15,920 GUESTS FROM FASD UNITED. MANY 6036 03:57:15,920 --> 03:57:19,200 OF YOU HAVE PROBABLY KNOWN AND 6037 03:57:19,200 --> 03:57:20,800 WORKED WITH FASD UNITED OVER THE 6038 03:57:20,800 --> 03:57:22,920 YEARS, PREVIOUSLY KNOWN AS THE 6039 03:57:22,920 --> 03:57:24,160 NATIONAL ORGANIZATION ON FETAL 6040 03:57:24,160 --> 03:57:28,080 ALCOHOL SYNDROME OR NOFAS. WHEN 6041 03:57:28,080 --> 03:57:30,840 WE THINK OF ONE MAIN VOICE IN 6042 03:57:30,840 --> 03:57:33,000 THE COUNTRY ON THE TOPIC OF 6043 03:57:33,000 --> 03:57:34,440 FETAL ALCOHOL SPECTRUM DISORDERS 6044 03:57:34,440 --> 03:57:36,920 AND ALCOHOL USE DURING PREGNANCY 6045 03:57:36,920 --> 03:57:40,440 WE THINK ABOUT FASD UNITED. ONE 6046 03:57:40,440 --> 03:57:43,240 RESOURCE THAT THEY HAD FOR MANY 6047 03:57:43,240 --> 03:57:44,920 YEARS IS NATIONAL STATE BY STATE 6048 03:57:44,920 --> 03:57:51,320 RESOURCE DIRECTORY, WHERE 6049 03:57:51,320 --> 03:57:52,520 CAN GO LOOK UP RESOURCES IN 6050 03:57:52,520 --> 03:57:54,480 THEIR AREA OR STATE LOOKING FOR 6051 03:57:54,480 --> 03:57:55,920 DIAGNOSIS OF A CONDITION ALONG 6052 03:57:55,920 --> 03:57:59,560 THE FASD CONTINUUM OR TREATMENT 6053 03:57:59,560 --> 03:58:04,600 FORVINGS AND FAMILIES LIVE 6054 03:58:04,600 --> 03:58:05,480 FASDS, PARENTS AND FAMILY 6055 03:58:05,480 --> 03:58:07,360 SUPPORT GROUPS, PREVENTION 6056 03:58:07,360 --> 03:58:08,920 PROGRAMS, TREATMENT FOR WOMEN, 6057 03:58:08,920 --> 03:58:11,480 ET CETERA. BUT MORE RECENTLY AS 6058 03:58:11,480 --> 03:58:13,240 TATIANA INDICATED FASD UNITED 6059 03:58:13,240 --> 03:58:16,920 HAS GREATLY EXPANDED TO BE ABLE 6060 03:58:16,920 --> 03:58:21,640 TO PROVIDE INDIVIDUALS LIVING 6061 03:58:21,640 --> 03:58:23,160 WITH FASD, FAMILY MEMBERS 6062 03:58:23,160 --> 03:58:24,680 SUPPORTERS WITH EXPERTS, ONE ON 6063 03:58:24,680 --> 03:58:27,200 ONE CONFIDENTIAL SUPPORT AND 6064 03:58:27,200 --> 03:58:28,920 REFERRALS KNOWN AS THE FAMILY 6065 03:58:28,920 --> 03:58:30,960 NAVIGATOR PROGRAM. SO OUR GUESTS 6066 03:58:30,960 --> 03:58:32,160 FROM FASD UNITED ARE GOING TO 6067 03:58:32,160 --> 03:58:34,720 TELL YOU MUCH MORE. WITH US 6068 03:58:34,720 --> 03:58:37,280 TODAY ARE TOM DONALDSON, CHIEF 6069 03:58:37,280 --> 03:58:39,320 EXECUTIVE OFFICER OF FASD 6070 03:58:39,320 --> 03:58:41,480 UNITED. HEATHER FRENCH WHO LEADS 6071 03:58:41,480 --> 03:58:45,440 THE FAMILY NAVIGATOR PROGRAM. 6072 03:58:45,440 --> 03:58:53,920 AND JENN WISDAHL, CHIEF 6073 03:58:53,920 --> 03:58:54,880 OPERATING OFFICER. ALL ARE ON 6074 03:58:54,880 --> 03:58:56,320 THE ICCFASD WEBSITE. WE WILL 6075 03:58:56,320 --> 03:58:58,560 NOW SEE A PRESENTATION BY FASD 6076 03:58:58,560 --> 03:59:00,680 UNITED ABOUT THE FAMILY 6077 03:59:00,680 --> 03:59:02,360 NAVIGATOR PROGRAM WHEN TIME FOR 6078 03:59:02,360 --> 03:59:12,800 DISCUSSION. THANK YOU. 6079 03:59:14,200 --> 03:59:14,880 >> THANK YOU VERY MUCH FOR 6080 03:59:14,880 --> 03:59:17,880 HAVING US HERE. YEN JENN 6081 03:59:17,880 --> 03:59:18,520 WISDAHL, CHIEF OPERATING OFFICER 6082 03:59:18,520 --> 03:59:21,560 OF FASD UNITED. I'M JOIND BY MY 6083 03:59:21,560 --> 03:59:22,720 COLLEAGUE HEATHER FRENCH, DIRECT 6084 03:59:22,720 --> 03:59:25,640 TO OF NAVIGATION AND RESOURCES, 6085 03:59:25,640 --> 03:59:26,560 AND LEADERS DURING THE. 6086 03:59:26,560 --> 03:59:28,560 DISCUSSION BY TOM DONALDSON CEO 6087 03:59:28,560 --> 03:59:30,160 AND ELIZABETH DANG OUR PARTNER 6088 03:59:30,160 --> 03:59:33,280 AT THE CDC. ONE OF THE 6089 03:59:33,280 --> 03:59:35,480 CHALLENGES AROUND NAVIGATING AN 6090 03:59:35,480 --> 03:59:38,800 FASD DIAGNOSIS IS THAT THE 6091 03:59:38,800 --> 03:59:40,160 PREDOMINANT FOCUS OF FIELD FOR 6092 03:59:40,160 --> 03:59:42,240 MANY YEARS IS ON RESEARCH AND 6093 03:59:42,240 --> 03:59:44,040 PREVENTION. BOTH HIGHLY 6094 03:59:44,040 --> 03:59:46,040 IMPORTANT BUT LEAVING A GAP FOR 6095 03:59:46,040 --> 03:59:49,040 THE AS MANY AS 1 IN 20 AMERICANS 6096 03:59:49,040 --> 03:59:51,960 WITH FASD LOOKING FOR SERVICES 6097 03:59:51,960 --> 03:59:53,840 AND SUPPORT. GREAT PROGRAMS AND 6098 03:59:53,840 --> 03:59:55,840 PRACTICES EXIST, THEY ARE FOUGHT 6099 03:59:55,840 --> 03:59:56,840 CONSISTENTLY AVAILABLE OR 6100 03:59:56,840 --> 03:59:58,960 WIDESPREAD. THINGS LIKE ACCESS 6101 03:59:58,960 --> 04:00:01,280 TO DIAGNOSIS, PARTICULARLY FOR 6102 04:00:01,280 --> 04:00:03,320 ADULTS OR ACCESS TO FASD 6103 04:00:03,320 --> 04:00:05,160 INFORMED MENTAL HEALTH SUPPORT 6104 04:00:05,160 --> 04:00:11,800 ARE FAR OUTSTRIPPED BY NEED. 6105 04:00:11,800 --> 04:00:14,280 FAMILIES FACE AN UPHILL JOURNEY 6106 04:00:14,280 --> 04:00:15,640 WITHOUT SYSTEMS OF CARE PUT IN 6107 04:00:15,640 --> 04:00:17,200 PLACE TO SUPPORT PEOPLE WITH 6108 04:00:17,200 --> 04:00:19,320 DISABILITY RECOGNIZING FASD 6109 04:00:19,320 --> 04:00:22,320 ADVOCATES ABILITY. INFORMATION 6110 04:00:22,320 --> 04:00:24,280 WHEN AVAILABLE IS OFTEN BASED ON 6111 04:00:24,280 --> 04:00:25,880 PILOT PROGRAMS OR RESEARCH 6112 04:00:25,880 --> 04:00:27,640 STUDIES COMPLETED AND THEN LEFT 6113 04:00:27,640 --> 04:00:30,160 WITHOUT UPDATES. FAMILIES HAVE 6114 04:00:30,160 --> 04:00:33,080 BECOME DETECTIVES OUT OF 6115 04:00:33,080 --> 04:00:34,480 NECESSITY, SPENDING HOURS 6116 04:00:34,480 --> 04:00:35,720 SEARCHING FOR SUPPORTS NEAR THEM 6117 04:00:35,720 --> 04:00:37,320 WHEN THEY OFTEN DON'T EXIST. AND 6118 04:00:37,320 --> 04:00:39,840 FOR THOSE NEW TO THE DIAGNOSIS 6119 04:00:39,840 --> 04:00:40,960 OR WITHOUT ABILITY TO DEVOTE 6120 04:00:40,960 --> 04:00:44,080 TIME TO RESEARCH, THIS BECOMES A 6121 04:00:44,080 --> 04:00:46,600 CHALLENGE. TO RESPOND TO THIS 6122 04:00:46,600 --> 04:00:48,920 NEED, OUR FAMILY NAVIGATION 6123 04:00:48,920 --> 04:00:52,000 PROGRAM BEGAN IN JANUARY 2022 AS 6124 04:00:52,000 --> 04:00:53,960 AN ACTIVE RESOURCE DIRECTORY. 6125 04:00:53,960 --> 04:00:55,200 AND MECHANISM FOR PROVIDING PEER 6126 04:00:55,200 --> 04:01:00,840 SUPPORT. THE MOMENT A RESOURCE 6127 04:01:00,840 --> 04:01:02,080 DIRECTORY IS PUBLISHED IT 6128 04:01:02,080 --> 04:01:04,360 BECOMES OUT OF DATE RAPIDLY. WE 6129 04:01:04,360 --> 04:01:06,600 WANT ODD A SYSTEM THAT PROVIDED 6130 04:01:06,600 --> 04:01:07,840 DYNAMIC SUPPORT AN TWO WAY 6131 04:01:07,840 --> 04:01:09,280 FEEDBACK ENSURING RESOURCES 6132 04:01:09,280 --> 04:01:10,520 PROVIDED WERE UP TO DATE AND IN 6133 04:01:10,520 --> 04:01:11,800 LINE WITH THE MOST CURRENT 6134 04:01:11,800 --> 04:01:16,080 RESEARCH. MOST IMPORTANTLY WE 6135 04:01:16,080 --> 04:01:18,400 WANTED FAMILIES AN PEOPLE 6136 04:01:18,400 --> 04:01:19,560 DIAGNOSED WITH FASD TO HAVE 6137 04:01:19,560 --> 04:01:20,560 PLACE TO GO TO FIND HELP AND 6138 04:01:20,560 --> 04:01:24,880 SUPPORT. THIS PUBLIC PRIVATE 6139 04:01:24,880 --> 04:01:26,400 PARTNERSHIP BETWEEN FASD UNITED, 6140 04:01:26,400 --> 04:01:31,360 THE CDC AND PROVIDES -- NABCA 6141 04:01:31,360 --> 04:01:32,960 PROVIDES NATIONWIDE ONE TO ONE 6142 04:01:32,960 --> 04:01:34,240 INDIVIDUALIZED REFERRALS TO 6143 04:01:34,240 --> 04:01:35,840 RESOURCES AN INFORMATION ON FASD 6144 04:01:35,840 --> 04:01:37,920 AND PRE-NATAL SUBSTANCE EXPOSURE 6145 04:01:37,920 --> 04:01:40,680 AS WELL AS PEER SUPPORT AND 6146 04:01:40,680 --> 04:01:41,440 CONNECTIVITY BETWEEN CLINICAL 6147 04:01:41,440 --> 04:01:44,680 AND NON-CLINICAL RESOURCES. AT 6148 04:01:44,680 --> 04:01:46,400 NO CHARGE AND WITH NO REFERRAL 6149 04:01:46,400 --> 04:01:48,960 NEEDED OUR NAVIGATORS ARE 6150 04:01:48,960 --> 04:01:50,640 AVAILABLE BY PHONE, EMAIL, 6151 04:01:50,640 --> 04:01:53,280 WEBSITE OR TEXT, MON THROUGH 6152 04:01:53,280 --> 04:01:56,040 FRIDAY FROM 9 A.M. TO 10 P.M. 6153 04:01:56,040 --> 04:01:57,600 SINCE ITS LAUNCH THE VOLUME MORE 6154 04:01:57,600 --> 04:02:01,600 THAN TRIPLED. WITH MARCH 2023 6155 04:02:01,600 --> 04:02:04,200 CONTINUING THAT TRAJECTORY 6156 04:02:04,200 --> 04:02:05,640 WITH HIGHEST VOLUMES OF 6157 04:02:05,640 --> 04:02:07,400 INQUIRIES RESPONDED TO. NOTICE 6158 04:02:07,400 --> 04:02:09,880 THROUGHOUT THE PRESENTATION WE 6159 04:02:09,880 --> 04:02:11,640 PROVIDED REAL NON-IDENTIFYING 6160 04:02:11,640 --> 04:02:13,840 EXAMPLES OF TYPES OF 6161 04:02:13,840 --> 04:02:14,880 COMMUNICATION RECEIVED AND SET 6162 04:02:14,880 --> 04:02:17,080 OUT BY OUR FAMILY NAVIGATION 6163 04:02:17,080 --> 04:02:22,960 TEAM. THIS PROGRAM IS INTENDED 6164 04:02:22,960 --> 04:02:24,240 LOW BARRIER WITH EASE OF ACCESS 6165 04:02:24,240 --> 04:02:25,960 FOR THE USER. RESOURCES ARE PUT 6166 04:02:25,960 --> 04:02:28,320 IN WRITING BUT CAN ALSO BE 6167 04:02:28,320 --> 04:02:29,760 EXPLAINED TO THE END USER BE 6168 04:02:29,760 --> 04:02:32,120 PHONE OR TEXT. THERE IS NO LIMIT 6169 04:02:32,120 --> 04:02:33,880 TO THE NUMBER OF TIMES SOMEONE 6170 04:02:33,880 --> 04:02:34,840 CAN CONTACT OUR NAVIGATOR 6171 04:02:34,840 --> 04:02:39,160 PROGRAM. IN FACT ON AVERAGE, 6172 04:02:39,160 --> 04:02:42,400 NAVIGATION USER CONTACTS US 2.68 6173 04:02:42,400 --> 04:02:44,680 TIMES WITH HIGH OF 14 INQUIRIES 6174 04:02:44,680 --> 04:02:53,920 FROM ONE PERSON. USERS HAVE 6175 04:02:53,920 --> 04:02:55,240 ABILITY TO CONTINUE ANNUITY OF 6176 04:02:55,240 --> 04:02:58,520 CARE IS ESTABLISH -- CONTINUITY 6177 04:02:58,520 --> 04:03:00,600 OF CARE IS ESTABLISHED. ALL 6178 04:03:00,600 --> 04:03:03,520 STAFF MEMBERS ON THE TEAM HAVE 6179 04:03:03,520 --> 04:03:04,880 LIVE EXPERIENCE WITH FASD AND 6180 04:03:04,880 --> 04:03:06,320 NAVIGATING THROUGH SYSTEMS OF 6181 04:03:06,320 --> 04:03:09,880 CARE NOT ALWAYS EASY TO ACCESS. 6182 04:03:09,880 --> 04:03:11,840 WE WILL SOON HEAR AN EXAMPLE OF 6183 04:03:11,840 --> 04:03:13,600 INQUIRY RECEIVED BY NAVIGATORS. 6184 04:03:13,600 --> 04:03:14,720 SOME OF THE CHALLENGES AND 6185 04:03:14,720 --> 04:03:16,040 RESOURCES ONLINE IS THAT THEY 6186 04:03:16,040 --> 04:03:18,440 ARE OFTEN HARD TO LOCATE OR 6187 04:03:18,440 --> 04:03:20,480 CONTAIN OUT OF DATE INACCURATE 6188 04:03:20,480 --> 04:03:21,920 INFORMATION. OUR NAVIGATORS DO 6189 04:03:21,920 --> 04:03:24,560 THE VERGE FOR THE USER AND DO 6190 04:03:24,560 --> 04:03:25,800 THEIR BEST TO VET THE 6191 04:03:25,800 --> 04:03:26,680 INFORMATION BEING GIVEN SO THE 6192 04:03:26,680 --> 04:03:28,320 END USER IS LEFT WITH USABLE 6193 04:03:28,320 --> 04:03:29,200 RESOURCES, AND UP TO DATE 6194 04:03:29,200 --> 04:03:32,840 INFORMATION. AS FASD SPECIFIC 6195 04:03:32,840 --> 04:03:34,520 RESOURCES CAN BE VERY HARD TO 6196 04:03:34,520 --> 04:03:35,960 LOCATE, OUR NAVIGATORS BECOME 6197 04:03:35,960 --> 04:03:39,080 OUT OF THE BOX DETECTIVES TO 6198 04:03:39,080 --> 04:03:40,520 LOOK FOR INFORMATION PERHAPS IN 6199 04:03:40,520 --> 04:03:42,200 OTHER AREAS THAT MAYBE 6200 04:03:42,200 --> 04:03:43,840 ACCESSIBLE IN LINE TO THE END 6201 04:03:43,840 --> 04:03:45,240 USER SUCH AS SUPPORT GROUPS OR 6202 04:03:45,240 --> 04:03:47,000 TRAINING. PEER SUPPORT IS 6203 04:03:47,000 --> 04:03:48,440 ANOTHER MAJOR COMPONENT OF OUR 6204 04:03:48,440 --> 04:03:56,560 USER EXPERIENCE WHEN IT FELT THE 6205 04:03:56,560 --> 04:03:57,400 FIRST FILE I INTERACTED WITH 6206 04:03:57,400 --> 04:03:58,960 ANOTHER PARENT WITH FASD IT WAS 6207 04:03:58,960 --> 04:04:01,360 POWERFUL AND I A FIRMING. THE 6208 04:04:01,360 --> 04:04:02,960 FIRST TIME I FELT NOT ALONE. IN 6209 04:04:02,960 --> 04:04:05,320 MANY INSTANCES, THIS IS THE 6210 04:04:05,320 --> 04:04:06,640 FIRST CONNECTION FAMILY MEMBERS 6211 04:04:06,640 --> 04:04:08,760 HAVE TO SOMEONE ELSE WITHOUT 6212 04:04:08,760 --> 04:04:11,800 LIVING EXPERIENCE. WHEN WE FIRST 6213 04:04:11,800 --> 04:04:13,600 BEGAN THE FAMILY NAVIGATOR 6214 04:04:13,600 --> 04:04:15,920 PROGRAM WE HAD NO IDEA HOW 6215 04:04:15,920 --> 04:04:17,440 POPULAR IT WOULD BEOR WOULD 6216 04:04:17,440 --> 04:04:20,040 BECOME AND IN FACT LET OUR FIRST 6217 04:04:20,040 --> 04:04:21,840 NAVIGATOR HEATHER KNOW SHE MAY 6218 04:04:21,840 --> 04:04:23,400 BE WORKING LESS THAN EIGHT HOURS 6219 04:04:23,400 --> 04:04:24,560 A WEEK. WE WERE VERY, VERY 6220 04:04:24,560 --> 04:04:33,600 WRONG. WE WANTED TO ENSURE 6221 04:04:33,600 --> 04:04:34,800 EVERY INQUIRY RECEIVED A 6222 04:04:34,800 --> 04:04:35,800 RESPONSE EVEN IF THE INFORMATION 6223 04:04:35,800 --> 04:04:37,560 DID NOT EXIST. WE KEPT TRACK OF 6224 04:04:37,560 --> 04:04:39,080 THE NEEDS, WHO WAS ASKING AND 6225 04:04:39,080 --> 04:04:41,560 WHERE GAPS WHERE. USING A 6226 04:04:41,560 --> 04:04:42,800 TICKETED BASED SYSTEM WE CAN 6227 04:04:42,800 --> 04:04:45,080 ALSO ENSURE CONTINUITY OF CARE 6228 04:04:45,080 --> 04:04:46,880 AND THAT FREQUENT USER ARE 6229 04:04:46,880 --> 04:04:47,400 RECEIVING CONSISTENT AND 6230 04:04:47,400 --> 04:04:49,840 RELEVANT INFORMATION. BECAUSE WE 6231 04:04:49,840 --> 04:04:51,880 TRACK DATA ON WHO IS CALLING 6232 04:04:51,880 --> 04:04:53,680 FROM WHERE AND FOR WHAT, WE ARE 6233 04:04:53,680 --> 04:04:55,120 ABLE TO VISUALIZE TRENDS AND 6234 04:04:55,120 --> 04:04:57,680 BEGINNING TO HAVE CONCRETE DATA 6235 04:04:57,680 --> 04:05:00,120 ON WHERE GAPS EXIST. IN THE 6236 04:05:00,120 --> 04:05:01,640 BACKGROUND ARE GROWING TEAM OF 6237 04:05:01,640 --> 04:05:02,720 NAVIGATORS ARE ALSO DOING 6238 04:05:02,720 --> 04:05:05,240 OUTREACH TO THE COMMUNITY 6239 04:05:05,240 --> 04:05:06,560 LOOKING ACTIVELY LOOKING FOR 6240 04:05:06,560 --> 04:05:08,680 RESOURCES AND THEN CONNECTING 6241 04:05:08,680 --> 04:05:10,560 CLINICAL AND NON-CLINICAL 6242 04:05:10,560 --> 04:05:12,640 ORGANIZATIONS THAT THEY FIND TO 6243 04:05:12,640 --> 04:05:15,360 INFORMATION ON FASD. FOR 6244 04:05:15,360 --> 04:05:17,720 EXAMPLE, ONE OF THE BIGGEST 6245 04:05:17,720 --> 04:05:19,040 PIECES OF INFORMATION WE SENT 6246 04:05:19,040 --> 04:05:21,600 OUT IN MARCH OF 2020 TO 6247 04:05:21,600 --> 04:05:22,920 ORGANIZATIONS THAT ARE 6248 04:05:22,920 --> 04:05:24,920 NAVIGATORS CONNECTED WITH, WAS 6249 04:05:24,920 --> 04:05:26,240 THE CURRENT TRAINING FOR 6250 04:05:26,240 --> 04:05:28,920 PROVIDERS BY THE AAP ONE OF OUR 6251 04:05:28,920 --> 04:05:35,840 PARTNERS THROUGH CDC. AS FAMILY 6252 04:05:35,840 --> 04:05:37,080 NAVIGATION HAS GROWN AND BECOME 6253 04:05:37,080 --> 04:05:38,640 MORE BROADLY UTILIZED WE SEE THE 6254 04:05:38,640 --> 04:05:40,840 NEED FOR ADDITIONAL DATA 6255 04:05:40,840 --> 04:05:42,280 COLLECTION AND DIFFERENTIATION. 6256 04:05:42,280 --> 04:05:45,600 WE HAVE SEEN THE NEED TO CAPTURE 6257 04:05:45,600 --> 04:05:49,360 ADDITIONAL DATA AND REFINE WHAT 6258 04:05:49,360 --> 04:05:51,560 DATA WE ARE CAPTURING. HERE TO 6259 04:05:51,560 --> 04:05:53,520 SHARE YOU OUR FINDINGS FROM THE 6260 04:05:53,520 --> 04:05:56,720 FIRST YEAR 2022 IS MY COLLEAGUE 6261 04:05:56,720 --> 04:06:01,040 AND ORIGINAL FAMILY NAVIGATOR, 6262 04:06:01,040 --> 04:06:08,320 HEATHER FRENCH. 6263 04:06:08,320 --> 04:06:09,000 >> I ALOK WITH THREE OTHERS MAKE 6264 04:06:09,000 --> 04:06:10,880 UP THE FAMILY NAVIGATION TEAM AT 6265 04:06:10,880 --> 04:06:14,120 FASD UNITED. LAST YEAR WE 6266 04:06:14,120 --> 04:06:15,920 RECEIVED 474 INQUIRIES AND FIRST 6267 04:06:15,920 --> 04:06:17,600 QUARTER OF THIS YEAR ALOPE, WE 6268 04:06:17,600 --> 04:06:22,560 HAVE ALREADY RECEIVED 233 AS 6269 04:06:22,560 --> 04:06:23,840 ORGANIZES AND GROUPS BECOME MORE 6270 04:06:23,840 --> 04:06:26,600 AWARE OF OUR SERVICE, AS 6271 04:06:26,600 --> 04:06:27,880 'RELIABLE AVENUE FOR RESOURCES, 6272 04:06:27,880 --> 04:06:29,600 WE HAVE SEEN A DRAMATIC INCREASE 6273 04:06:29,600 --> 04:06:33,040 IN REQUEST FOR SUPPORT. OUR 6274 04:06:33,040 --> 04:06:35,440 WEBSITE FORM IS UTILIZED WAY OF 6275 04:06:35,440 --> 04:06:37,040 REQUESTING ASSISTANCE FROM OUR 6276 04:06:37,040 --> 04:06:38,480 NAVIGATORS. HOWEVER, WE HAVE 6277 04:06:38,480 --> 04:06:39,920 SEEN INCREASE IN PHONE CALLS 6278 04:06:39,920 --> 04:06:42,080 SINCE WE HAVE EXPANDED THE 6279 04:06:42,080 --> 04:06:45,480 PROGRAM TO HAVE PHOTO 6280 04:06:45,480 --> 04:06:46,560 INVESTIGATABLE TO 10 P.M. 6281 04:06:46,560 --> 04:06:47,800 EASTERN AND CONSIDERING OPTION 6282 04:06:47,800 --> 04:06:49,560 TO INCREASE ACCESS BY CHAT OR 6283 04:06:49,560 --> 04:06:51,680 TEXT AS WE GET REQUESTS AS 6284 04:06:51,680 --> 04:06:58,400 RESPOND BY TEXT. THE MAJORITY OF 6285 04:06:58,400 --> 04:07:00,240 REQUESTS COME FROM CAREGIVERS OF 6286 04:07:00,240 --> 04:07:01,280 INDIVIDUALS WITH FASD. 6287 04:07:01,280 --> 04:07:03,600 PROFESSIONALS THAT ARE REACH OUT 6288 04:07:03,600 --> 04:07:05,120 INCLUDE MEDICAL MENTAL HEALTH 6289 04:07:05,120 --> 04:07:07,200 PROVIDERS, THERAPISTS TEACHERS, 6290 04:07:07,200 --> 04:07:08,760 CHILD WELFARE WORKERS AN CHILD 6291 04:07:08,760 --> 04:07:15,880 CARE PROVIDERS. INQUIRIES 6292 04:07:15,880 --> 04:07:17,000 FOLLOW POPULATION TRENDS. 6293 04:07:17,000 --> 04:07:17,800 BECAUSE SOME STATES ARE LIMITED 6294 04:07:17,800 --> 04:07:19,560 OR OUT OF DATE OFTEN WE ARE 6295 04:07:19,560 --> 04:07:21,480 LOOKING FOR NATIONAL RESOURCES 6296 04:07:21,480 --> 04:07:23,440 RESOURCES FROM OTHER STATES WHEN 6297 04:07:23,440 --> 04:07:25,040 INQUIRIES ARRIVE. WE ARE PROUD 6298 04:07:25,040 --> 04:07:26,600 TO ANNOUNCE WE HAVE NOW PROVIDED 6299 04:07:26,600 --> 04:07:28,600 SUPPORT TO INDIVIDUALS IN ALL 50 6300 04:07:28,600 --> 04:07:35,200 STATES. WE SEE WHAT IS 6301 04:07:35,200 --> 04:07:36,320 REQUESTED BY INDIVIDUALS WHEN 6302 04:07:36,320 --> 04:07:38,440 THEY CONTACT US. STATE RESOURCES 6303 04:07:38,440 --> 04:07:41,520 INCLUDE MEDICAID WAIVER 6304 04:07:41,520 --> 04:07:42,080 PROGRAMS, VOCATIONAL 6305 04:07:42,080 --> 04:07:43,120 REHABILITATION. WRAP AROUND 6306 04:07:43,120 --> 04:07:44,800 SERVICES AND LOCAL PROGRAMS AND 6307 04:07:44,800 --> 04:07:48,160 INFORMATION ON FASD. STARTING IN 6308 04:07:48,160 --> 04:07:50,160 2023 STATE RESOURCE CATEGORY HAS 6309 04:07:50,160 --> 04:07:52,240 BEEN BROKEN DOWN SO WE CAN 6310 04:07:52,240 --> 04:07:53,920 DIFFERENTIATE WHAT IS BEING 6311 04:07:53,920 --> 04:07:55,920 REQUESTED. MENTAL HEALTH THERAPY 6312 04:07:55,920 --> 04:07:57,480 AND LEGAL COUNSEL RESOURCES ARE 6313 04:07:57,480 --> 04:07:59,040 HARD TO FIND THAT ARE FASD 6314 04:07:59,040 --> 04:08:01,680 INFORMED. HELPING CAREGIVERS 6315 04:08:01,680 --> 04:08:03,160 ADVOCATE FOR THEIR LOVED ONE 6316 04:08:03,160 --> 04:08:05,160 WITH THE SCHOOL SYSTEM, 6317 04:08:05,160 --> 04:08:06,920 ESPECIALLY OLDER STUDENTS AND 6318 04:08:06,920 --> 04:08:08,600 THOSE TRANSITIONING TO ADULTHOOD 6319 04:08:08,600 --> 04:08:09,880 CAN ALSO BE A CHALLENGE FOR OUR 6320 04:08:09,880 --> 04:08:15,440 NAVIGATORS. THE CONNECTION TO 6321 04:08:15,440 --> 04:08:19,280 RESOURCES THESES REACH OUT TO US 6322 04:08:19,280 --> 04:08:21,520 MORE BUT WHAT THEY UNDERSTAND IS 6323 04:08:21,520 --> 04:08:22,720 WHAT MEANS TO MOST TO THEM AS 6324 04:08:22,720 --> 04:08:23,520 THEY FEEL ALONE AN 6325 04:08:23,520 --> 04:08:24,240 MISUNDERSTOOD. 6326 04:08:24,240 --> 04:08:26,240 >> AS HEATHER ALLUDE TO OUR 6327 04:08:26,240 --> 04:08:29,000 FUTURE PLANS FOR THE FAMILY 6328 04:08:29,000 --> 04:08:30,880 NAVIGATION PROGRAM INCLUDES 6329 04:08:30,880 --> 04:08:32,560 INCREASED FOCUS ON DATA WE 6330 04:08:32,560 --> 04:08:35,080 COLLECT, AS WELL AS FOCUS ON THE 6331 04:08:35,080 --> 04:08:38,280 INFORMATION THAT WE ARE SENDING 6332 04:08:38,280 --> 04:08:40,520 OUT TO CLINICAL AND NON-CLINICAL 6333 04:08:40,520 --> 04:08:42,600 ORGANIZES THAT WE COME INTO 6334 04:08:42,600 --> 04:08:44,240 CONTACT WITH IN SEARCHING FOR 6335 04:08:44,240 --> 04:08:46,640 RESOURCES AND SUPPORT FOR THE 6336 04:08:46,640 --> 04:08:51,000 FAMILIES AND INDIVIDUALS THAT WE 6337 04:08:51,000 --> 04:08:53,240 SERVE THIS IS A CONSTANT PROCESS 6338 04:08:53,240 --> 04:08:55,360 ASSESSING AND REASSESSING HOW WE 6339 04:08:55,360 --> 04:08:57,320 ARE DOING AND WHAT WE ARE DOING 6340 04:08:57,320 --> 04:09:04,880 WITH THE PROGRAM. THE DATA HELPS 6341 04:09:04,880 --> 04:09:06,200 VISUALIZE CONTINUUM OF CARE FOR 6342 04:09:06,200 --> 04:09:07,640 PEOPLE WITH FASD AND BEGINS TO 6343 04:09:07,640 --> 04:09:09,720 ADDRESS THE GAPS. STARTING IN 6344 04:09:09,720 --> 04:09:13,120 JANUARY OF 2023 WE BEGAN 6345 04:09:13,120 --> 04:09:14,280 COLLECTING DATA ON WHICH 6346 04:09:14,280 --> 04:09:15,960 RESOURCES ARE REQUESTED VERSUS 6347 04:09:15,960 --> 04:09:19,120 WHICH ARE ACTUALLY AVAILABLE. WE 6348 04:09:19,120 --> 04:09:20,440 BEGUN QUANTIFYING AMOUNT OF 6349 04:09:20,440 --> 04:09:22,240 RESOURCES AVAILABLE BY STATES 6350 04:09:22,240 --> 04:09:25,520 AND NATIONALLY AND HOPE TO ROLL 6351 04:09:25,520 --> 04:09:27,280 OUT STATE DATA SHEETS OR REPORT 6352 04:09:27,280 --> 04:09:31,000 CARDS USING THIS INFORMATION IN 6353 04:09:31,000 --> 04:09:32,760 LATE 2023. IN LOOKING AT 6354 04:09:32,760 --> 04:09:35,440 RESOURCES, WE ARE ALSO FINDING 6355 04:09:35,440 --> 04:09:37,400 AREAS WHERE FASD OR PRE-NATAL 6356 04:09:37,400 --> 04:09:40,160 ALCOHOL EXPOSURE MIGHT BE 6357 04:09:40,160 --> 04:09:42,400 IDENTIFIED SUCH AS THROUGH CAPTA 6358 04:09:42,400 --> 04:09:45,120 OR WIC AND WHERE FAMILY 6359 04:09:45,120 --> 04:09:46,040 NAVIGATION PROGRAMS COULD BE OF 6360 04:09:46,040 --> 04:09:48,200 SUPPORT. ADDITIONALLY, THIS 6361 04:09:48,200 --> 04:09:53,560 INFORMATION CAN BE USED TO 6362 04:09:53,560 --> 04:09:54,920 INFORM POLICY NEEDS, DIRECT 6363 04:09:54,920 --> 04:09:55,800 RESOURCES AND INCREASE 6364 04:09:55,800 --> 04:09:59,040 PROGRAMMING WHERE THERE MAY NOT 6365 04:09:59,040 --> 04:10:00,400 BE AVAILABLE -- ADEQUATE 6366 04:10:00,400 --> 04:10:03,880 AVAILABILITY. THROUGH THE FAMILY 6367 04:10:03,880 --> 04:10:07,720 NAVIGATION PROGRAM, AS A CYCLE 6368 04:10:07,720 --> 04:10:09,920 OF DATA COLLECTION SUPPORT, 6369 04:10:09,920 --> 04:10:12,360 DOCUMENTATION, COMMUNICATION IN 6370 04:10:12,360 --> 04:10:13,720 THE FASD COMMUNITY AND OUT TO 6371 04:10:13,720 --> 04:10:15,920 THE FIELD SO RESOURCES CAN BE 6372 04:10:15,920 --> 04:10:17,440 MADE AVAILABLE WHERE THEY ARE 6373 04:10:17,440 --> 04:10:22,400 NEEDED MOST. FROM THIS 6374 04:10:22,400 --> 04:10:23,960 COMMUNITY BASED DATA AND SUPPORT 6375 04:10:23,960 --> 04:10:26,280 INFORMS FUTURE WORK BUT MOST 6376 04:10:26,280 --> 04:10:29,240 IMPORTANTLY OUR NAVIGATORS CAN 6377 04:10:29,240 --> 04:10:31,440 PROVIDE HOPE INCITE AND 6378 04:10:31,440 --> 04:10:32,760 COMMUNITY TO PEOPLE UTILIZING 6379 04:10:32,760 --> 04:10:36,480 THE FAMILY NAVIGATOR PROGRAM. 6380 04:10:36,480 --> 04:10:41,040 OUR PLANS FOR QUARTERS 3 AND 4, 6381 04:10:41,040 --> 04:10:43,120 2023 INCLUDE THE IMPLEMENTATION 6382 04:10:43,120 --> 04:10:44,680 OF MORE ENHANCED FEEDBACK 6383 04:10:44,680 --> 04:10:47,600 MECHANISMS. TO MEASURE NOT JUST 6384 04:10:47,600 --> 04:10:49,360 IMPACT OF THE WORK WE ARE DOING 6385 04:10:49,360 --> 04:10:57,880 THE INFORMATION WE ARE SENDING 6386 04:10:57,880 --> 04:11:01,440 OUT,/HOW IMPORTANT THE RESOURCES 6387 04:11:01,440 --> 04:11:03,440 WE FIND. THIS INCLUDES BOTH 6388 04:11:03,440 --> 04:11:08,960 VARIES COMPLETED BY EMAIL OR 6389 04:11:08,960 --> 04:11:10,280 TEXT BUT ALSO INTERVIEWS WITH 6390 04:11:10,280 --> 04:11:11,920 END USERS AND LOOK AT SPACING 6391 04:11:11,920 --> 04:11:14,240 THOSE OUT NOT IMMEDIATELY 6392 04:11:14,240 --> 04:11:19,200 FOLLOWING THE NAVIGATION 6393 04:11:19,200 --> 04:11:19,880 REQUEST, BUT THREE AND SIX 6394 04:11:19,880 --> 04:11:22,520 MONTHS DOWN THE ROAD TO SEE HOW 6395 04:11:22,520 --> 04:11:26,400 THAT INFORMATION WAS IMPLEMENTED 6396 04:11:26,400 --> 04:11:28,280 AND USED IN THE CARE OF THE 6397 04:11:28,280 --> 04:11:30,720 PERSON WITH FASD. CURRENTLY 6398 04:11:30,720 --> 04:11:31,840 FEEDBACK WE RECEIVE, ALL 6399 04:11:31,840 --> 04:11:34,200 FEEDBACK WE DO RECEIVE TO 6400 04:11:34,200 --> 04:11:35,320 NAVIGATOR PROGRAM IS COLLECTED 6401 04:11:35,320 --> 04:11:37,240 AND REVIEWED. AND SO WE 6402 04:11:37,240 --> 04:11:40,240 PROVIDED A WORD CLOUD HERE BASED 6403 04:11:40,240 --> 04:11:43,080 ON ALL 2022 FEEDBACK RECEIVED BY 6404 04:11:43,080 --> 04:11:45,840 OUR FAMILY NAVIGATORS FROM END 6405 04:11:45,840 --> 04:11:48,880 USERS REQUESTERS. OUR 6406 04:11:48,880 --> 04:11:50,240 NAVIGATORS REALLY ARE HERE TO 6407 04:11:50,240 --> 04:11:53,760 HELP. I THINK THAT IS SHOWN IN 6408 04:11:53,760 --> 04:11:57,040 THE FEEDBACK WE RECEIVED. 6409 04:11:57,040 --> 04:12:00,800 TAKING TIME, SUPPORT, HELPFUL 6410 04:12:00,800 --> 04:12:02,000 INFORMATION, THESE ARE ALL 6411 04:12:02,000 --> 04:12:03,600 CORNER STONES OF WHAT WE ARE 6412 04:12:03,600 --> 04:12:04,680 TRYING TO PROVIDE WITH THIS 6413 04:12:04,680 --> 04:12:11,920 PROGRAM. OUR NAVIGATORS HEATHER, 6414 04:12:11,920 --> 04:12:14,680 LAURA -- NAVIGATORS HEATHER 6415 04:12:14,680 --> 04:12:16,040 LAURA, KRISTIN AND THE OTHER 6416 04:12:16,040 --> 04:12:18,920 LAURA, ARE HIGHLY DEDICATED 6417 04:12:18,920 --> 04:12:21,120 INDIVIDUALS WHO HAVE A VERY 6418 04:12:21,120 --> 04:12:24,480 CHALLENGING ROLE. AND THEY DO IT 6419 04:12:24,480 --> 04:12:28,840 WITH A SMILE ON THEIR FACE AND A 6420 04:12:28,840 --> 04:12:31,400 HEART FOR SUPPORT AND SERVICE. 6421 04:12:31,400 --> 04:12:35,240 TO ACCESS OUR FAMILY NAVIGATION 6422 04:12:35,240 --> 04:12:35,920 SERVICE YOU CAN DIRECT 6423 04:12:35,920 --> 04:12:38,240 INDIVIDUALS TO OUR WEBSITE UNDER 6424 04:12:38,240 --> 04:12:40,680 FAMILY NAVIGATOR OR THEY CAN 6425 04:12:40,680 --> 04:12:44,440 CALL OUR 800 LINE BETWEEN 9 A.M. 6426 04:12:44,440 --> 04:12:47,000 AND 10 P.M., REACH A LIVE 6427 04:12:47,000 --> 04:12:48,400 PERSON, AND CONNECT TO OUR 6428 04:12:48,400 --> 04:12:52,000 NAVIGATOR PROGRAM. WE ENCOURAGE 6429 04:12:52,000 --> 04:12:52,920 YOU SHARE THIS INFORMATION 6430 04:12:52,920 --> 04:12:55,120 THROUGHOUT YOUR NETWORKS. WE 6431 04:12:55,120 --> 04:12:57,040 HAVE INFORMATION THAT WE CAN 6432 04:12:57,040 --> 04:12:59,560 EMAIL OR MAIL OUT TO YOU TO 6433 04:12:59,560 --> 04:13:02,760 SHARE WITHIN YOUR NETWORKS. SO 6434 04:13:02,760 --> 04:13:04,840 THAT WHEN A DIAGNOSIS IS GIVEN 6435 04:13:04,840 --> 04:13:07,200 OR WHEN FASD IS SUSPECTED, THERE 6436 04:13:07,200 --> 04:13:11,280 IS A PLACE FOR PEOPLE TO TURN TO 6437 04:13:11,280 --> 04:13:13,840 TO RECEIVE GUIDANCE OR SUPPORT 6438 04:13:13,840 --> 04:13:19,120 ON WHAT TO DO NEXT. NEXT. WE ARR 6439 04:13:19,120 --> 04:13:20,360 TO HELP AND I THANK YOU FOR YOUR 6440 04:13:20,360 --> 04:13:27,840 TIME TODAY. 6441 04:13:27,840 --> 04:13:32,400 >> THANK YOU SO MUCH TO JENN AND 6442 04:13:32,400 --> 04:13:34,720 HEATHER, AS THEY SAID AT THE 6443 04:13:34,720 --> 04:13:36,960 BEGINNING OF THE PRESENTATION, 6444 04:13:36,960 --> 04:13:38,240 TOM DONALDSON IS ALSO HERE FOR 6445 04:13:38,240 --> 04:13:40,200 THE DISCUSSION PORTION SO WE ARE 6446 04:13:40,200 --> 04:13:41,800 NOW GOING TO SEE IF ANYONE HAS 6447 04:13:41,800 --> 04:13:47,520 ANY QUESTIONS. I JUST WANTED TO 6448 04:13:47,520 --> 04:13:48,840 REITERATE WHAT A GREAT SERVICE 6449 04:13:48,840 --> 04:13:50,920 THIS IS, FASD UNITED OFFERS AND 6450 04:13:50,920 --> 04:13:52,840 TO BE AVAILABLE SO MANY HOURS OF 6451 04:13:52,840 --> 04:13:54,040 THE DAY, IT GOES BACK TO THE 6452 04:13:54,040 --> 04:13:56,040 COMMENT I THINK THAT KATHY 6453 04:13:56,040 --> 04:13:59,760 HOTELLING MADE EARLIER, IT TAKES 6454 04:13:59,760 --> 04:14:02,160 HOURS TO RESEARCH THIS 6455 04:14:02,160 --> 04:14:05,880 INFORMATION AND I KNOW SOMETIMES 6456 04:14:05,880 --> 04:14:08,280 CAN LEAD DOWN RABBIT HOLES THAT 6457 04:14:08,280 --> 04:14:10,960 PROVE UNHELPFUL SO THE FAMILY 6458 04:14:10,960 --> 04:14:11,960 NAVIGATORS ARE HERE TO DO THAT 6459 04:14:11,960 --> 04:14:14,960 WORK FOR YOU. I ALSO THINK THE 6460 04:14:14,960 --> 04:14:17,320 LEVEL AND AMOUNT OF DATA BEING 6461 04:14:17,320 --> 04:14:20,840 COLLECTED IS REALLY HELPFUL TO 6462 04:14:20,840 --> 04:14:21,800 ELIMINATE GAPS THAT ARE OUT 6463 04:14:21,800 --> 04:14:25,200 THERE. TO HELP INFORM NEW 6464 04:14:25,200 --> 04:14:27,040 RESOURCES THAT CAN BE HELPFUL TO 6465 04:14:27,040 --> 04:14:28,360 FAMILIES AS WELL SUCH AS THE 6466 04:14:28,360 --> 04:14:30,680 STATE DATA SHEET. THAT WERE 6467 04:14:30,680 --> 04:14:35,480 MENTIONED. WE DO HAVE ONE 6468 04:14:35,480 --> 04:14:36,880 QUESTION FROM EARLIER THAT SEEMS 6469 04:14:36,880 --> 04:14:39,200 RELEVANT. BUT WE WONDERED IF 6470 04:14:39,200 --> 04:14:42,200 FROM THE FAMILY NAVIGATOR 6471 04:14:42,200 --> 04:14:43,360 PROGRAM DO YOU HAVE A SENSE HOW 6472 04:14:43,360 --> 04:14:48,080 MUCH REQUESTS YOU GET FROM GRAND 6473 04:14:48,080 --> 04:14:49,400 PARENTS WHO ARE RAISING 6474 04:14:49,400 --> 04:14:50,400 GRANDCHILDREN AND POSSIBLY ALSO 6475 04:14:50,400 --> 04:14:51,920 LOOKING TO CONNECT WITH OTHER 6476 04:14:51,920 --> 04:14:55,000 GRAND PARENTS? 6477 04:14:55,000 --> 04:14:56,240 >> I'M GOING TO APOLOGIZE HERE 6478 04:14:56,240 --> 04:15:06,800 BECAUSE MY VIDEO IS NOT WORKING WE 6479 04:15:09,400 --> 04:15:11,360 DON'T TRACK SPECIFICALLY GRAND 6480 04:15:11,360 --> 04:15:12,720 PARENTS BUT ANECDOTALLY WE DO 6481 04:15:12,720 --> 04:15:18,280 GET A NUMBER OF GRAND PARENTS 6482 04:15:18,280 --> 04:15:21,600 REQUESTING SUPPORT. AS FOR 6483 04:15:21,600 --> 04:15:24,200 RESOURCE, I DON'T KNOW OF ANY 6484 04:15:24,200 --> 04:15:29,040 GRANDPARENT SPECIFIC RESOURCES 6485 04:15:29,040 --> 04:15:31,400 FOR FASD SUCH AS GRANDPARENT 6486 04:15:31,400 --> 04:15:32,080 SPECIFIC SUPPORT GROUPS AT THIS 6487 04:15:32,080 --> 04:15:33,960 POINT BUT THE MORE PEOPLE ASK 6488 04:15:33,960 --> 04:15:36,120 FOR THINGS, THE MORE WE CAN KEEP 6489 04:15:36,120 --> 04:15:37,920 TRACK. THIS IS WHERE KEEP TRACK 6490 04:15:37,920 --> 04:15:44,000 OF THOSE GAPS IS REALLY HELPFUL. 6491 04:15:44,000 --> 04:15:45,720 IF YOU DON'T ASK WE DON'T KNOW 6492 04:15:45,720 --> 04:15:48,040 IT'S NEEDED. SO A HELPFUL 6493 04:15:48,040 --> 04:15:50,320 INQUIRY TO PUT INTO 1/2 GATORS 6494 04:15:50,320 --> 04:15:51,080 AND LET THEM SEARCH TO SEE WHAT 6495 04:15:51,080 --> 04:15:52,720 THEY CAN -- NAVIGATORS SO LET 6496 04:15:52,720 --> 04:15:54,240 THEM SEARCH TO SEE WHAT THEY CAN 6497 04:15:54,240 --> 04:15:58,200 FIND TOO. 6498 04:15:58,200 --> 04:16:01,640 >> I WANTED TO ASK THOSE WHO ARE 6499 04:16:01,640 --> 04:16:03,200 HERE TODAY, IF ANYONE WANTED TO 6500 04:16:03,200 --> 04:16:04,520 RAISE THEIR HAND OR LET US KNOW 6501 04:16:04,520 --> 04:16:08,280 BUT BASED ON THE TYPE OF DATA 6502 04:16:08,280 --> 04:16:10,760 SHARED, FASD UNITED IS 6503 04:16:10,760 --> 04:16:11,800 COLLECTING, IS THERE ANYTHING 6504 04:16:11,800 --> 04:16:14,440 ELSE THAT YOU THINK WOULD BE 6505 04:16:14,440 --> 04:16:15,760 HELPFUL THAT YOU MAYBE DIDN'T 6506 04:16:15,760 --> 04:16:17,280 SEE REFLECTED BUT THAT YOU THINK 6507 04:16:17,280 --> 04:16:18,720 WOULD HELP INFORM THE FIELD AND 6508 04:16:18,720 --> 04:16:24,720 BE HELPFUL TO FAMILY? TRISH, YOU 6509 04:16:24,720 --> 04:16:25,240 HAVE YOUR HAND UP? 6510 04:16:25,240 --> 04:16:27,760 >> THANKS. I HAVE A QUESTION, 6511 04:16:27,760 --> 04:16:30,080 THIS WAS IN MY MIND ANYWAY AND 6512 04:16:30,080 --> 04:16:33,600 YOU PROVIDED A SEGWAY TO ASK IT. 6513 04:16:33,600 --> 04:16:35,720 I'M CURIOUS KATHY MITCHELL SPOKE 6514 04:16:35,720 --> 04:16:37,040 TO DIFFICULTY IN FINDING SOMEONE 6515 04:16:37,040 --> 04:16:39,200 IN THE DC AREA TO GET A 6516 04:16:39,200 --> 04:16:42,280 DIAGNOSIS. SO I WAS CURIOUS IF 6517 04:16:42,280 --> 04:16:43,320 YOU ARE COLLECTING DATA AND IF 6518 04:16:43,320 --> 04:16:45,000 YOU HAVE A SENSE, ARE PEOPLE 6519 04:16:45,000 --> 04:16:46,720 GETTING DEFINITIVE DIAGNOSIS OR 6520 04:16:46,720 --> 04:16:48,280 KIND OF THIS COULD BE AND THEN 6521 04:16:48,280 --> 04:16:49,600 THEY ARE LOOKING FOR MORE 6522 04:16:49,600 --> 04:16:54,360 INFORMATION WHERE TO TURN? SO 6523 04:16:54,360 --> 04:16:56,360 JUST CURIOUS HOW PEOPLE ARE 6524 04:16:56,360 --> 04:16:58,120 GETTING EITHER DIAGNOSIS OR JUST 6525 04:16:58,120 --> 04:17:01,720 A SUGGESTION. 6526 04:17:01,720 --> 04:17:04,840 >> ONE OF THE THINGS WE DO IS 6527 04:17:04,840 --> 04:17:06,840 CONNECT THEM WITH WHAT 6528 04:17:06,840 --> 04:17:08,440 DIAGNOSTIC RESOURCES WE KNOW ARE 6529 04:17:08,440 --> 04:17:14,240 AVAILABLE. ONE AREA NOW WE ARE 6530 04:17:14,240 --> 04:17:17,000 TRACKING IS IS DIAGNOSTIC 6531 04:17:17,000 --> 04:17:19,200 RESOURCE OVER AN HOUR AWAY, IF 6532 04:17:19,200 --> 04:17:21,000 THE IS THE DIAGNOSTIC RESOURCE 6533 04:17:21,000 --> 04:17:24,160 OUT OF STATE OR SIMPLY NOT 6534 04:17:24,160 --> 04:17:26,960 AVAILABLE? OFTEN WE ARE HAVING 6535 04:17:26,960 --> 04:17:29,040 TO GO BACK PLEASE CORRECT ME IF 6536 04:17:29,040 --> 04:17:31,040 I SPEAK OUT OF TURN BUT WE MAY 6537 04:17:31,040 --> 04:17:33,720 HAVE TO GO BACK TO THE FAMILY 6538 04:17:33,720 --> 04:17:35,600 AND SAY I'M SORRY, THERE IS NOT 6539 04:17:35,600 --> 04:17:36,480 SOMETHING AVAILABLE IN YOUR 6540 04:17:36,480 --> 04:17:38,480 AREA. HERE ARE OTHER AVENUES YOU 6541 04:17:38,480 --> 04:17:44,240 CAN PURSUE. UNFORT FORTUNATELY 6542 04:17:44,240 --> 04:17:45,920 THAT IS WHERE WE ARE RIGHT NOW 6543 04:17:45,920 --> 04:17:51,520 WITH DIAGNOSES. THE OTHER THING 6544 04:17:51,520 --> 04:17:52,440 DUO AS WE REACH OUT TO 6545 04:17:52,440 --> 04:17:53,960 PRACTICERS IF WE DIAGNOSE WE ARE 6546 04:17:53,960 --> 04:17:55,880 PROVIDING THEM WITH RESOURCES 6547 04:17:55,880 --> 04:17:59,400 SUCH AS THE AAP TRAININGS AND 6548 04:17:59,400 --> 04:18:01,320 THE CDC TRAININGS, WE ARE 6549 04:18:01,320 --> 04:18:02,960 PROVIDING THEM WITH INFORMATION 6550 04:18:02,960 --> 04:18:04,120 TO HOPEFULLY WET THEIR INTEREST 6551 04:18:04,120 --> 04:18:06,000 AND LET THEM KNOW AND MAKE THEM 6552 04:18:06,000 --> 04:18:07,200 AWARE OF THE NEED THAT IS OUT 6553 04:18:07,200 --> 04:18:09,560 THERE IN THE COMMUNITY. FOR THIS 6554 04:18:09,560 --> 04:18:13,000 PARTICULAR DIAGNOSTIC RESOURCE. 6555 04:18:13,000 --> 04:18:20,600 >> SHARON YOU HAVE YOUR HAND UP 6556 04:18:20,600 --> 04:18:23,120 YOU ARE ON MUTE, SHARON. 6557 04:18:23,120 --> 04:18:27,240 >> SORRY. I WANT TO KNOW IF THE 6558 04:18:27,240 --> 04:18:29,560 NAVIGATOR PROGRAM IS COLLECTING 6559 04:18:29,560 --> 04:18:30,360 INFORMATION ON THE RACEETH IN 6560 04:18:30,360 --> 04:18:34,040 THIS THE OF PEOPLE WHO ARE 6561 04:18:34,040 --> 04:18:37,560 SEEKING THESE SERVICES OR THIS 6562 04:18:37,560 --> 04:18:38,440 INFORMATION? 6563 04:18:38,440 --> 04:18:40,000 >> NOT AT THIS TIME BUT IT COULD 6564 04:18:40,000 --> 04:18:43,080 BE SOMETHING WE CAN DO IN THE 6565 04:18:43,080 --> 04:18:45,360 FUTURE. VIABLE OPTION. 6566 04:18:45,360 --> 04:18:46,960 >> THAT WOULD BE SOMETHING OF A 6567 04:18:46,960 --> 04:18:53,720 LOT OF INTEREST TO THE CHILDR 6568 04:18:53,720 --> 04:18:54,840 CHILDREN'S BUREAU. I STARTED TO 6569 04:18:54,840 --> 04:18:56,480 TALK ABOUT THIS EARLIER BUT A 6570 04:18:56,480 --> 04:18:58,400 GREAT CONCERN AT CHILDREN'S 6571 04:18:58,400 --> 04:19:01,480 BUREAU THAT CHILDREN OF COLOR 6572 04:19:01,480 --> 04:19:02,320 ARE OVERREPRESENTED IN FASTER 6573 04:19:02,320 --> 04:19:05,760 CARE. AND -- FOSTER CARE. THERE 6574 04:19:05,760 --> 04:19:07,600 IS A LOT OF TALK ABOUT USING THE 6575 04:19:07,600 --> 04:19:12,800 TERM OVERSURVEILLANCE, AND SO 6576 04:19:12,800 --> 04:19:14,000 PEOPLE ARE TALKING AT THE 6577 04:19:14,000 --> 04:19:16,200 CHILDREN'S BUREAU ABOUT 6578 04:19:16,200 --> 04:19:17,120 OVERSURVEILLING CHILDREN OF 6579 04:19:17,120 --> 04:19:19,400 COLOR OR FAMILIES OF COLOR AND 6580 04:19:19,400 --> 04:19:20,840 POSSIBLY BRINGING THAT'S WHY 6581 04:19:20,840 --> 04:19:22,640 MAYBE MORE ARE COMING TO FOSTER 6582 04:19:22,640 --> 04:19:27,000 CARE. HOWEVER, I AM ALSO 6583 04:19:27,000 --> 04:19:28,360 CONCERNED THAT WHAT WE ARE DOING 6584 04:19:28,360 --> 04:19:32,120 IS WE ARE IN DANGER OF 6585 04:19:32,120 --> 04:19:33,440 SYSTEMATICALLY NOT PROVIDING THE 6586 04:19:33,440 --> 04:19:34,320 SERVICES THAT THOSE FAMILIES 6587 04:19:34,320 --> 04:19:40,360 NEED. SO THAT IS A DANGER OF 6588 04:19:40,360 --> 04:19:41,960 TRYING TO BE FAIR, SOMETIMES 6589 04:19:41,960 --> 04:19:44,760 WHEN YOU ARE TRYING TO BE FAIR 6590 04:19:44,760 --> 04:19:46,320 YOU CAN MAKE IT BOOM RANGE AND 6591 04:19:46,320 --> 04:19:48,400 IT IS DOING THE OPPOSITE WHAT 6592 04:19:48,400 --> 04:19:52,000 YOUR INTENTION IS. WE DON'T WANT 6593 04:19:52,000 --> 04:19:53,480 TO SCOOP THEM UP AND BRING THEM 6594 04:19:53,480 --> 04:19:55,400 TO FOSTER CARE BUT WE DO WANT TO 6595 04:19:55,400 --> 04:19:59,040 PROVIDE SERVICES FOR BOTH 6596 04:19:59,040 --> 04:20:01,480 MINORITIES AND WHITE FAMILIES, 6597 04:20:01,480 --> 04:20:02,840 SO I AM CONCERNED ABOUT THAT AND 6598 04:20:02,840 --> 04:20:04,160 I THINK THIS WOULD BE A GREAT 6599 04:20:04,160 --> 04:20:05,520 INTEREST TO THE CHILDREN'S 6600 04:20:05,520 --> 04:20:06,520 BUREAU TO KNOW WHO ARE THE 6601 04:20:06,520 --> 04:20:08,920 PEOPLE WHO ARE CALLING AND 6602 04:20:08,920 --> 04:20:11,760 ASKING FOR THE INFORMATION. 6603 04:20:11,760 --> 04:20:14,400 >> I THINK ALONG THOSE SAME 6604 04:20:14,400 --> 04:20:15,560 LINES WE HAVE IMPLEMENTED A 6605 04:20:15,560 --> 04:20:19,240 TRACKING MECHANISM FOR THE CHILD 6606 04:20:19,240 --> 04:20:20,600 CURRENTLY OR THE PERSON BECAUSE 6607 04:20:20,600 --> 04:20:25,920 WE GET CALL ACROSS THE SPECTRUM 6608 04:20:25,920 --> 04:20:30,360 FROM GERIATRIC TO PEDIATRIC AND 6609 04:20:30,360 --> 04:20:32,120 ALL STAGES IN BETWEEN. WE ARE 6610 04:20:32,120 --> 04:20:33,800 TRACKING WHO IS CURRENTLY 6611 04:20:33,800 --> 04:20:36,280 INVOLVED IN THE CHILD WELFARE 6612 04:20:36,280 --> 04:20:39,160 SYSTEM. SO THAT IS SOME DATA IN 6613 04:20:39,160 --> 04:20:40,600 THE FUTURE WE WILL BE ABLE TO 6614 04:20:40,600 --> 04:20:44,880 PROVIDE TO YOU. 6615 04:20:44,880 --> 04:20:48,960 >> THANK YOU FOR THAT POINT 6616 04:20:48,960 --> 04:20:50,080 BECAUSE IT GIVES THOUGHT ABOUT 6617 04:20:50,080 --> 04:20:51,600 WHAT MORE INFORMATION TO 6618 04:20:51,600 --> 04:20:54,520 COLLECT. BACK TO TRISH YOUR 6619 04:20:54,520 --> 04:20:56,200 POINT ABOUT THE KNOWLEDGE WE CAN 6620 04:20:56,200 --> 04:20:58,680 GAIN FROM THOSE THAT WE REFER. 6621 04:20:58,680 --> 04:21:00,160 SOME OF THE FOLKS WE REFER TO 6622 04:21:00,160 --> 04:21:02,160 FOR DIAGNOSIS ARE WITHIN THE 6623 04:21:02,160 --> 04:21:04,120 FASD UNITED AFFILIATE NETWORK. 6624 04:21:04,120 --> 04:21:06,840 SO WE DO HAVE A PARTNERSHIP WITH 6625 04:21:06,840 --> 04:21:08,280 THEM OR IN SOME INSTANCES THEY 6626 04:21:08,280 --> 04:21:12,840 ARE MEMBERS OF THE CHAMPIONS 6627 04:21:12,840 --> 04:21:16,040 NETWORK THROUGH AAP OR ACOG. 6628 04:21:16,040 --> 04:21:17,960 THIS IS SOMETHING THAT RIGHT NOW 6629 04:21:17,960 --> 04:21:20,080 WE ARE TALKING ABOUT AS WE LOOK 6630 04:21:20,080 --> 04:21:23,160 AT OUR EVALUATION FOR THE 6631 04:21:23,160 --> 04:21:26,040 PROJECT, HOW TO CAPTURE NOT JUST 6632 04:21:26,040 --> 04:21:29,560 THE ANECDOTES BUT REAL DATA ON 6633 04:21:29,560 --> 04:21:32,120 OUTCOMES FOR INDIVIDUALS WHO GET 6634 04:21:32,120 --> 04:21:34,240 DIAGNOSIS. THAT IS QUITE OFTEN 6635 04:21:34,240 --> 04:21:35,840 THE JUST THE STARTING POINT FOR 6636 04:21:35,840 --> 04:21:38,760 PEOPLE. BECAUSE SOME PEOPLE, 6637 04:21:38,760 --> 04:21:41,960 AGAIN JENN AND HEATHER HAVE THE 6638 04:21:41,960 --> 04:21:42,800 DATA WHETHER PEOPLE COMING TO US 6639 04:21:42,800 --> 04:21:44,480 LOOKING FOR THE DIAGNOSIS 6640 04:21:44,480 --> 04:21:45,640 BECAUSE THEY HAVE JUST BECOME 6641 04:21:45,640 --> 04:21:47,520 AWARE OR SUSPECTED FASD OR QUITE 6642 04:21:47,520 --> 04:21:48,200 OFTEN THEY HAVE JUST RECEIVED 6643 04:21:48,200 --> 04:21:51,520 THE DIAGNOSIS FOR A LOVED ONE. 6644 04:21:51,520 --> 04:21:55,080 SO IN ALL STAGES THEY ARE 6645 04:21:55,080 --> 04:22:01,400 CLIENTS WE ARE HOPING TO SERVE. 6646 04:22:01,400 --> 04:22:05,560 >> QUESTION WE DID RECEIVE FROM 6647 04:22:05,560 --> 04:22:07,960 ORCID FASD SERVICES I BELIEVE IS 6648 04:22:07,960 --> 04:22:09,840 AN FASD UNITED AFFILIATE. THANKS 6649 04:22:09,840 --> 04:22:11,280 FOR THIS WONDERFUL PROGRAM, WHEN 6650 04:22:11,280 --> 04:22:12,640 MIGHT WE BE ABLE TO SEE A REPORT 6651 04:22:12,640 --> 04:22:15,200 CARD THAT SHOWS RESOURCES WITHIN 6652 04:22:15,200 --> 04:22:16,520 SPECIFIC SERVICE CATEGORIES IN 6653 04:22:16,520 --> 04:22:21,440 EACH STATE? 6654 04:22:21,440 --> 04:22:23,520 >> WE ARE WORKING ON STATE 6655 04:22:23,520 --> 04:22:25,720 REPORT CARDS CURRENTLY. WE HOPE 6656 04:22:25,720 --> 04:22:26,800 TO HAVE THOSE OUT THIRD OR FIRST 6657 04:22:26,800 --> 04:22:32,120 QUARTER OF 2023. -- OR FOURTH 6658 04:22:32,120 --> 04:22:34,720 QUARTER, 2023. THE STATE REPORT 6659 04:22:34,720 --> 04:22:36,480 CARDS WOULD BE LOOKING AT SOME 6660 04:22:36,480 --> 04:22:37,880 JUST SOME GENERAL CATEGORIES. 6661 04:22:37,880 --> 04:22:43,040 ARE THERE DIAGNOSTIC RESOURCES 6662 04:22:43,040 --> 04:22:44,280 AVAILABLE IN THAT STATE. WHAT 6663 04:22:44,280 --> 04:22:46,400 IS CAPACITY OF THOSE RESOURCES, 6664 04:22:46,400 --> 04:22:47,880 MANY PLACES THAT DO DIAGNOSES 6665 04:22:47,880 --> 04:22:49,840 ARE A MULTI-DISCIPLINARY CLINIC 6666 04:22:49,840 --> 04:22:51,920 THAT MAY HAVE ONLY ONE CLINIC 6667 04:22:51,920 --> 04:22:53,320 DAY PER WEEK OR ONE PER MONTH 6668 04:22:53,320 --> 04:22:58,120 THEY DIAGNOSE. AND HOW THAT 6669 04:22:58,120 --> 04:22:59,440 COMPARES TO BIRTHRATE OF IN THAT 6670 04:22:59,440 --> 04:23:02,000 STATE. IS THERE ADEQUATE 6671 04:23:02,000 --> 04:23:04,720 DIAGNOSTIC RESOURCES TO KEEP UP 6672 04:23:04,720 --> 04:23:10,160 WITH THE BIRTHS IN THE STATE? IS 6673 04:23:10,160 --> 04:23:14,200 FASD RECOGNIZED IN SPECIAL 6674 04:23:14,200 --> 04:23:15,120 EDUCATION IN THAT STATE? DO 6675 04:23:15,120 --> 04:23:17,040 PEOPLE WITH FASD QUALIFY FOR 6676 04:23:17,040 --> 04:23:18,000 DISABILITY SERVICES IN THAT 6677 04:23:18,000 --> 04:23:22,680 STATE? WITHOUT HAVING A LOW IQ 6678 04:23:22,680 --> 04:23:27,320 OR IDD. SO THERE IS ALL KINDS OF 6679 04:23:27,320 --> 04:23:28,240 DIFFERENT THINGS WE HOPE TO 6680 04:23:28,240 --> 04:23:30,560 MEASURE IN THESE REPORT CARDS, 6681 04:23:30,560 --> 04:23:33,880 JUST TO GET A LAY OF THE LAND 6682 04:23:33,880 --> 04:23:35,120 WHERE WE ARE SPECIFICALLY IN 6683 04:23:35,120 --> 04:23:36,440 THAT STATE AND HOW CAN WE 6684 04:23:36,440 --> 04:23:38,960 IMPROVE AND GET BETTER IN THAT 6685 04:23:38,960 --> 04:23:40,200 STATE? ARE FOSTER PARENTS 6686 04:23:40,200 --> 04:23:41,760 TRAINED ON FASD? IS THERE 6687 04:23:41,760 --> 04:23:43,640 TRAINING AVAILABLE TO THEM TO 6688 04:23:43,640 --> 04:23:44,640 SUPPORT YOUTH WITH FASD THAT 6689 04:23:44,640 --> 04:23:48,240 MAYBE IN THEIR CARE? BECAUSE YOU 6690 04:23:48,240 --> 04:23:50,280 MAY NEED TO PARENT DIFFERENTLY 6691 04:23:50,280 --> 04:23:51,040 FOR THAT CHILD THAN A CHILD WITH 6692 04:23:51,040 --> 04:23:52,880 SIMPLY TRAUMA. TRAUMA AND FASD 6693 04:23:52,880 --> 04:23:54,800 IS A COMBINATION YOU MIGHT COME 6694 04:23:54,800 --> 04:23:57,360 INTO CONTACT WITH AND HOW DO YOU 6695 04:23:57,360 --> 04:23:58,920 DO THAT. THIS IS ARE ALL THINGS 6696 04:23:58,920 --> 04:24:01,480 WE HOPE TO TRACK ON THE STATE BY 6697 04:24:01,480 --> 04:24:03,400 STATE BASIS. THROUGH THIS 6698 04:24:03,400 --> 04:24:04,960 PROJECT AND THROUGH THE OUTREACH 6699 04:24:04,960 --> 04:24:06,360 WE ARE DOING FOR THE FAMILIES 6700 04:24:06,360 --> 04:24:10,560 THAT ARE CONNECTING WITH US. 6701 04:24:10,560 --> 04:24:12,600 >> ANOTHER QUESTION THAT CAME 6702 04:24:12,600 --> 04:24:13,960 IN, MOST PEOPLE ARE CALLING 6703 04:24:13,960 --> 04:24:15,520 SEARCHING FOR DIRECT SERVICES, 6704 04:24:15,520 --> 04:24:17,400 DO YOU EVER GET CALLS FROM 6705 04:24:17,400 --> 04:24:19,000 INDIVIDUALS OR AGENCIES 6706 04:24:19,000 --> 04:24:24,960 REQUESTING TRAINING? 6707 04:24:24,960 --> 04:24:27,080 >> SOMETIMES WE DO, MOST 6708 04:24:27,080 --> 04:24:28,240 PROFESSIONALS OR ORGANIZATIONS 6709 04:24:28,240 --> 04:24:29,600 ARE CALLING WITH A SPECIFIC 6710 04:24:29,600 --> 04:24:31,720 PERSON THEY ARE WORKING FOR OR 6711 04:24:31,720 --> 04:24:33,520 WITH AND NEEDING SERVICES OR 6712 04:24:33,520 --> 04:24:34,920 SUPPORTS FOR THAT SPECIFIC 6713 04:24:34,920 --> 04:24:36,520 PERSON BUT WE HAVE GOTTEN CALL 6714 04:24:36,520 --> 04:24:38,560 CASE MANAGERS AND SOCIAL WORKERS 6715 04:24:38,560 --> 04:24:47,160 CHILD CARE PROVIDERS. TEACHERS. 6716 04:24:47,160 --> 04:24:48,880 >> WHEN I WAS INTRODUCING YOU ALL 6717 04:24:48,880 --> 04:24:51,840 AND I MENTIONED HOW FOR YEARS 6718 04:24:51,840 --> 04:24:55,000 FASD UNITED HAD MORE STATIC 6719 04:24:55,000 --> 04:24:56,440 ONLINE DIRECTORY WHERE PEOPLE 6720 04:24:56,440 --> 04:24:58,880 COULD GO. CAN YOU TALK MORE 6721 04:24:58,880 --> 04:25:00,680 ABOUT HOW -- WHAT YOU ARE 6722 04:25:00,680 --> 04:25:01,880 LEARNING THROUGH TALKING WITH 6723 04:25:01,880 --> 04:25:03,640 INDIVIDUALS WHO CALL IN FOR HELP 6724 04:25:03,640 --> 04:25:05,680 TO THE NAVIGATOR PROGRAM, HOW 6725 04:25:05,680 --> 04:25:11,120 THAT THEN INFORMS UPDATING THE 6726 04:25:11,120 --> 04:25:12,680 DIRECTORY, VICE VERSA, IS THE 6727 04:25:12,680 --> 04:25:14,120 DIRECTORY GOING TO REMAIN 6728 04:25:14,120 --> 04:25:16,000 SOMETHING PEOPLE CAN ALSO ACCESS 6729 04:25:16,000 --> 04:25:18,400 OR IS THE GOAL FOR PEOPLE TO 6730 04:25:18,400 --> 04:25:20,400 MOVE TOWARD CALLING THE 6731 04:25:20,400 --> 04:25:21,640 NAVIGATOR? IF THAT QUESTION 6732 04:25:21,640 --> 04:25:23,280 MAKES SENSE. 6733 04:25:23,280 --> 04:25:24,520 >> WE WANT IT TO BE WHERE THEY 6734 04:25:24,520 --> 04:25:25,800 CALL US BUT WE ARE ALSO WORKING 6735 04:25:25,800 --> 04:25:27,600 ON PROVIDING THAT STATIC 6736 04:25:27,600 --> 04:25:30,360 DIRECTORY THAT IS MORE 6737 04:25:30,360 --> 04:25:32,320 SEARCHABLE FORMAT P. JENN CAN 6738 04:25:32,320 --> 04:25:37,880 SPEAK TO THAT TOO. 6739 04:25:37,880 --> 04:25:39,440 >> I WOULD HATE TO TAKE AWAY A 6740 04:25:39,440 --> 04:25:42,080 RESOURCE THAT WORKS FOR SOME TO 6741 04:25:42,080 --> 04:25:43,760 GRANTS A RESOURCE THAT GIVES FOR 6742 04:25:43,760 --> 04:25:45,200 OTHERS. WHEN THE RESOURCES ARE 6743 04:25:45,200 --> 04:25:48,040 SO COMPLIMENTARY IN NATURE, IT 6744 04:25:48,040 --> 04:25:51,360 MAKES SENSE TO HAVE THEM BOTH 6745 04:25:51,360 --> 04:25:54,080 BUT DIRECT AS MUCH AS POSSIBLE 6746 04:25:54,080 --> 04:25:57,840 TO THE INDIVIDUALIZED EXPERIENCE 6747 04:25:57,840 --> 04:26:00,040 THE NAVIGATOR PROVIDES OPPOSED 6748 04:26:00,040 --> 04:26:03,800 TO HIGHER BARRIER EXPERIENCE OF 6749 04:26:03,800 --> 04:26:05,520 A DATABASE TO SEARCH THROUGH AND 6750 04:26:05,520 --> 04:26:07,560 MAKE CONNECTIONS ON YOUR OWN. SO 6751 04:26:07,560 --> 04:26:08,800 I DON'T THINK THERE IS AN 6752 04:26:08,800 --> 04:26:11,360 INTENTION TO PHASE OUT ONE OVER 6753 04:26:11,360 --> 04:26:14,720 THE OTHER BUT. I DO THINK THAT 6754 04:26:14,720 --> 04:26:16,560 THEY CAN WORK DEFINITELY IN A 6755 04:26:16,560 --> 04:26:19,760 COMPLIMENTARY WAY. 6756 04:26:19,760 --> 04:26:24,760 >> 6757 04:26:24,760 --> 04:26:30,360 >> ARE THERE OTHER QUESTIONS 6758 04:26:30,360 --> 04:26:34,400 FROM ANYONE? BILL, GO AHEAD. 6759 04:26:34,400 --> 04:26:36,040 >> I WAS WONDERING IF THERE IS 6760 04:26:36,040 --> 04:26:40,480 AN OPPORTUNITY TO FOLLOW-UP WITH 6761 04:26:40,480 --> 04:26:41,640 INDIVIDUALS YOU ARE PROVIDING 6762 04:26:41,640 --> 04:26:43,520 RESOURCES TO SEE IN THE FUTURE 6763 04:26:43,520 --> 04:26:47,720 THREE MONTHS, SIX MONTHS FROM 6764 04:26:47,720 --> 04:26:49,600 NOW WHAT WORKED FOR THEM AND 6765 04:26:49,600 --> 04:26:52,920 DIDN'T WORK, MAYBE GIVE 6766 04:26:52,920 --> 04:26:53,960 OPPORTUNITY FOR SOME FEEDBACK. 6767 04:26:53,960 --> 04:26:56,160 >> THAT IS DEFINITELY PART OUR 6768 04:26:56,160 --> 04:26:58,240 EVALUATION PLAN FOR THE PROGRAM. 6769 04:26:58,240 --> 04:27:02,240 WE DO WANT TO KNOW IS THIS 6770 04:27:02,240 --> 04:27:04,000 HELPFUL AND USEFUL? WHICH 6771 04:27:04,000 --> 04:27:07,080 RESOURCES WERE MOST HELPFUL? 6772 04:27:07,080 --> 04:27:09,000 WHICH HARDER TO CONNECT WITH, 6773 04:27:09,000 --> 04:27:09,600 WHAT ARE THE BARRIERS. YEAH 6774 04:27:09,600 --> 04:27:12,360 THAT, IS DEFINITELY PART OF THE 6775 04:27:12,360 --> 04:27:14,400 WORK PLAN TO HAVE THAT KIND OF 6776 04:27:14,400 --> 04:27:16,280 EVALUATION PUT IN PLACE. 6777 04:27:16,280 --> 04:27:22,000 >> THANKS, JENN. TATIANA HAS A 6778 04:27:22,000 --> 04:27:22,280 QUESTION. 6779 04:27:22,280 --> 04:27:24,960 >> I WANT TO ASK WHAT YOU 6780 04:27:24,960 --> 04:27:27,360 EXPERIENCES CAN BE WITH 6781 04:27:27,360 --> 04:27:32,680 PROVIDERS PHYSICIAN CALL YOU OR 6782 04:27:32,680 --> 04:27:34,000 MAYBE SOCIAL PROFESSIONAL, 6783 04:27:34,000 --> 04:27:40,840 SOMETHING ELSE. I QUOTE UNQUOTE 6784 04:27:40,840 --> 04:27:43,120 WHEN JENN DESCRIBED SOME OF THE 6785 04:27:43,120 --> 04:27:45,240 EXPERIENCES WITH EDUCATION, I 6786 04:27:45,240 --> 04:27:47,120 JUST ALWAYS WAS THINKING WHICH 6787 04:27:47,120 --> 04:27:49,080 PROVIDE EDUCATION TO 6788 04:27:49,080 --> 04:27:50,480 PROFESSIONALS AND IT IS NEVER 6789 04:27:50,480 --> 04:27:54,320 ENOUGH. WE TRAIN, WE PROVIDE, 6790 04:27:54,320 --> 04:27:56,520 JENN DESCRIBE JUST VERY 6791 04:27:56,520 --> 04:27:58,520 DIFFERENT SYSTEMS DESCRIBED 6792 04:27:58,520 --> 04:28:00,600 EDUCATION SYSTEM BUT IT DOESN'T 6793 04:28:00,600 --> 04:28:02,960 HAVE TO BE EDUCATION, WHEN 6794 04:28:02,960 --> 04:28:07,200 SOMEONE WHO GETS IN TOUCH WITH 6795 04:28:07,200 --> 04:28:11,840 SOMEONE WHO HAS Ph.D. CAN 6796 04:28:11,840 --> 04:28:14,640 CONTACT SOMEONE WHO CAN HELP IN 6797 04:28:14,640 --> 04:28:15,920 THIS SPECIFIC SITUATION, IT IS 6798 04:28:15,920 --> 04:28:17,960 REALLY VERY SIMILAR TO WHAT YOU 6799 04:28:17,960 --> 04:28:20,200 DO WITH (INAUDIBLE) YOU NAVIGATE 6800 04:28:20,200 --> 04:28:23,120 PEOPLE, FAMILIES WITH SERVICES. 6801 04:28:23,120 --> 04:28:25,360 SO I WAS JUST THINKING JENN 6802 04:28:25,360 --> 04:28:26,360 DESCRIBED, IT IS JUST VERY 6803 04:28:26,360 --> 04:28:28,280 DIFFERENT. IN ADDITION TO 6804 04:28:28,280 --> 04:28:31,240 GENERAL EDUCATION, ITS CAN BE 6805 04:28:31,240 --> 04:28:34,360 SOMETHING WHICH WILL MITIGATE 6806 04:28:34,360 --> 04:28:36,760 THIS PROFESSIONAL TO JUST 6807 04:28:36,760 --> 04:28:39,360 INFORMATION TO HELP MAYBE JUST 6808 04:28:39,360 --> 04:28:40,680 BACK UP MAYBE SITUATION, MAYBE 6809 04:28:40,680 --> 04:28:42,880 SOMETHING. SO MY QUESTION IS, TO 6810 04:28:42,880 --> 04:28:44,920 MAKE IT SHORT, WHAT EXPERIENCES 6811 04:28:44,920 --> 04:28:47,440 YOU HAVE WITH PROFESSIONALS, DO 6812 04:28:47,440 --> 04:28:52,080 THEY CALL YOU? 6813 04:28:52,080 --> 04:28:53,880 >> DO YOU WANT TO TAKE THAT 6814 04:28:53,880 --> 04:28:54,080 HEATHER? 6815 04:28:54,080 --> 04:28:55,680 >> I WAS GOING TO SAY 6816 04:28:55,680 --> 04:28:57,080 PROFESSIONALS WE CALL ARE MOSTLY 6817 04:28:57,080 --> 04:28:58,280 THE ONES THAT HAVE SPECIFIC 6818 04:28:58,280 --> 04:28:59,120 FAMILIES THEY ARE TRYING TO 6819 04:28:59,120 --> 04:29:01,040 HELP. AND THEY CALL LOOKING FOR 6820 04:29:01,040 --> 04:29:03,200 SPECIFIC THINGS FOR THEM. WE 6821 04:29:03,200 --> 04:29:04,760 HAVE PROVIDED INFORMATION ON 6822 04:29:04,760 --> 04:29:06,360 TRAININGS AND THINGS TO THOSE 6823 04:29:06,360 --> 04:29:12,720 THAT HAVE REQUESTED IT AS WELL. 6824 04:29:12,720 --> 04:29:16,480 >> THE OTHER THING WE DO PROVIDE 6825 04:29:16,480 --> 04:29:19,240 IS THERE ARE THROUGH FASD 6826 04:29:19,240 --> 04:29:20,600 COLLABORATIVE, WE DO PROVIDE 6827 04:29:20,600 --> 04:29:22,400 THEM WITH ACCESS TO OR 6828 04:29:22,400 --> 04:29:24,600 INFORMATION ON THE SPECIAL 6829 04:29:24,600 --> 04:29:28,520 INTEREST GROUPS. THE DISCIPLINES 6830 04:29:28,520 --> 04:29:29,600 SPECIFIC SPECIAL INTEREST GROUPS 6831 04:29:29,600 --> 04:29:30,880 THEY HOST THERE SO THEY CONNECT 6832 04:29:30,880 --> 04:29:33,120 WITH OTHER PEOPLE IN THEIR FIELD 6833 04:29:33,120 --> 04:29:36,080 WHO ARE SPEAKING THE SAME 6834 04:29:36,080 --> 04:29:37,640 LANGUAGE SO TO SPEAK. WE CONNECT 6835 04:29:37,640 --> 04:29:40,040 THEM THROUGH THE CDC TO OUR 6836 04:29:40,040 --> 04:29:41,160 PARTNERS SO IF SOMEBODY IN 6837 04:29:41,160 --> 04:29:42,560 FAMILY MEDICINE IS CONTACTING 6838 04:29:42,560 --> 04:29:45,720 US, WE WANT TO CONNECT THEM WITH 6839 04:29:45,720 --> 04:29:46,520 THE AMERICAN ASSOCIATION OF 6840 04:29:46,520 --> 04:29:49,640 FAMILY MEDICINE AND THE 6841 04:29:49,640 --> 04:29:51,640 CHAMPIONS OUR CDC PARTNERSHIP 6842 04:29:51,640 --> 04:29:53,600 THERE SO WE TRY TO MAKE THOSE 6843 04:29:53,600 --> 04:29:55,400 CONNECTIONS AS MUCH AS POSSIBLE 6844 04:29:55,400 --> 04:29:57,720 AND ANSWER THEIR DIRECT 6845 04:29:57,720 --> 04:29:59,000 QUESTIONS THEY MAY HAVE ABOUT 6846 04:29:59,000 --> 04:30:00,520 THE INDIVIDUAL THEY SERVE AND 6847 04:30:00,520 --> 04:30:04,640 SUPPORT. BUT AS A FORMER 6848 04:30:04,640 --> 04:30:06,880 RESIDENT OF B.C. WHOSE CHILDREN 6849 04:30:06,880 --> 04:30:08,560 TOOK PART IN THOSE PROGRAMS YOU 6850 04:30:08,560 --> 04:30:10,040 ARE REFERENCING TATIANA, THEY 6851 04:30:10,040 --> 04:30:20,280 WERE GREAT. 6852 04:30:21,600 --> 04:30:24,640 >> OTHER QUESTIONS? 6853 04:30:24,640 --> 04:30:26,840 >> IT IS JENN. CAN I ASK A 6854 04:30:26,840 --> 04:30:30,040 QUESTION ABOUT THE DIAGNOSIS? 6855 04:30:30,040 --> 04:30:32,040 WHEN YOU ARE TRACKING ARE YOU 6856 04:30:32,040 --> 04:30:33,280 TRACKING WHEN PEOPLE ARE LOOKING 6857 04:30:33,280 --> 04:30:34,760 FOR DIAGNOSIS, ARE YOU 6858 04:30:34,760 --> 04:30:37,680 SEPARATING THEM OUT BY AGES OR 6859 04:30:37,680 --> 04:30:38,280 JUST IN GENERAL POT? 6860 04:30:38,280 --> 04:30:40,520 >> WE ARE TRACKING BY AGES. SO 6861 04:30:40,520 --> 04:30:43,160 WE ARE LOOKING AT WHO -- AND WE 6862 04:30:43,160 --> 04:30:44,440 ARE ONLY TRACKING WITH THIS 6863 04:30:44,440 --> 04:30:48,080 POINT BY PEDIATRIC VERSUS ADULT. 6864 04:30:48,080 --> 04:30:51,640 BUT WE ARE DEFINITELY TRACKING 6865 04:30:51,640 --> 04:30:54,800 THAT DATA BECAUSE WE KNOW WELL 6866 04:30:54,800 --> 04:30:59,320 DIAGNOSTIC CAPACITY IS NOT WHERE 6867 04:30:59,320 --> 04:31:00,800 WE WANT IT FOR YOUTH IT IS LESS 6868 04:31:00,800 --> 04:31:06,000 FOR ADULTS AT THIS POINT. ONE 6869 04:31:06,000 --> 04:31:07,320 BIG CHALLENGE WE HAVE WHEN 6870 04:31:07,320 --> 04:31:10,080 CONTACTD BY ADULTS WHO SUSPECT 6871 04:31:10,080 --> 04:31:12,000 FASD IS CONNECT THEM WITH 6872 04:31:12,000 --> 04:31:14,040 SOMETHING ABLE TO GIVE THEM A 6873 04:31:14,040 --> 04:31:24,080 DIAGNOSIS. 6874 04:31:24,080 --> 04:31:28,200 >> I PUT A QUESTION IN THE CHAT, 6875 04:31:28,200 --> 04:31:31,520 IT IS KATRINA. WHEN YOU GUYS DO 6876 04:31:31,520 --> 04:31:33,080 YOUR TRAININGS YOU HAVE 6877 04:31:33,080 --> 04:31:34,440 INDIVIDUALS PRESENTING ALONGSIDE 6878 04:31:34,440 --> 04:31:39,080 YOU OR DOING THE TRAININGS WITH 6879 04:31:39,080 --> 04:31:44,000 YOU BECAUSE IT IS VERY DIFFERENT 6880 04:31:44,000 --> 04:31:48,400 WHEN PEOPLE TALK ABOUT FASD AND 6881 04:31:48,400 --> 04:31:53,440 TRAIN ON FASD VERSUS SOMEONE WHO 6882 04:31:53,440 --> 04:31:57,360 IS LIVING WITH IT. IT IS VERY, 6883 04:31:57,360 --> 04:31:59,400 VERY DIFFERENT. DO YOU HAVE 6884 04:31:59,400 --> 04:32:01,560 INDIVIDUALS DOING THAT TRAINING 6885 04:32:01,560 --> 04:32:07,200 ALONGSIDE YOU AND IF YOU HAVE, 6886 04:32:07,200 --> 04:32:09,040 WHAT HAVE THE DIFFERENCES BEEN? 6887 04:32:09,040 --> 04:32:10,760 >> WE ARE -- WHEN WE ARE 6888 04:32:10,760 --> 04:32:12,120 REFERRING TO FAMILY NAVIGATOR 6889 04:32:12,120 --> 04:32:13,840 PROGRAM WE ARE TYPICALLY 6890 04:32:13,840 --> 04:32:16,000 REFERRING TO OUR AFFILIATES, TO 6891 04:32:16,000 --> 04:32:21,080 OUR CDC PARTNERS, TO OTHER 6892 04:32:21,080 --> 04:32:23,240 OUTSIDE ORGANIZES OUTSIDE OF 6893 04:32:23,240 --> 04:32:25,840 TRAINING BUT I CAN SAY HONESTLY 6894 04:32:25,840 --> 04:32:29,040 THE TRAININGS WHERE THERE ARE 6895 04:32:29,040 --> 04:32:29,960 INDIVIDUALS WITH FASD PRESENT 6896 04:32:29,960 --> 04:32:31,600 ABLE TO SPEAK ABOUT THEIR LIVING 6897 04:32:31,600 --> 04:32:32,600 EXPERIENCE AND WHAT WORKS BEST 6898 04:32:32,600 --> 04:32:34,000 FOR THEM AND DOESN'T WORK BEST 6899 04:32:34,000 --> 04:32:39,240 FOR THEM. AND JUST HOW THIS THE 6900 04:32:39,240 --> 04:32:40,840 APPROACH BEING TAKEN IMPACTS 6901 04:32:40,840 --> 04:32:43,240 THEM DIRECTLY IN THEIR LIVES IS 6902 04:32:43,240 --> 04:32:44,480 INCREDIBLY POWERFUL AND 6903 04:32:44,480 --> 04:32:46,840 EXTREMELY IMPORTANT. SO THE 6904 04:32:46,840 --> 04:32:48,080 WORK YOU ARE DOING WITH THE 6905 04:32:48,080 --> 04:32:52,560 CHANGE MAKERS, ABSOLUTELY. 6906 04:32:52,560 --> 04:32:54,680 HAVING SOMEONE WITH A LIVING 6907 04:32:54,680 --> 04:32:57,960 EXPERIENCE AVAILABLE AT THOSE 6908 04:32:57,960 --> 04:33:00,600 TRAININGS IS JUST THE ICING ON 6909 04:33:00,600 --> 04:33:02,960 THE CAKE. DEFINITELY A WAY TO 6910 04:33:02,960 --> 04:33:04,160 IMPROVE THE TRAININGS IN MY 6911 04:33:04,160 --> 04:33:08,000 OPINION. 6912 04:33:08,000 --> 04:33:10,120 >> I CAN SPEAK TO THAT AS WELL 6913 04:33:10,120 --> 04:33:12,280 THROUGH OUR PROJECTS WITH 6914 04:33:12,280 --> 04:33:14,040 NATIONAL PROFESSIONAL 6915 04:33:14,040 --> 04:33:15,280 ORGANIZATIONS, SUCH AS TRYING TO 6916 04:33:15,280 --> 04:33:17,000 REACH HEALTHCARE PROVIDERS TO 6917 04:33:17,000 --> 04:33:18,000 EDUCATE THEM ABOUT THE 6918 04:33:18,000 --> 04:33:20,480 IMPORTANCE OF THIS TOPIC THAT 6919 04:33:20,480 --> 04:33:21,840 WHEN WE HAVE PRESENTATIONS THAT 6920 04:33:21,840 --> 04:33:24,080 ARE PAIRED WITH PEOPLE WITH 6921 04:33:24,080 --> 04:33:26,160 LIVED EXPERIENCE, MOSTLY BECAUSE 6922 04:33:26,160 --> 04:33:28,400 OF OUR RELATIONSHIP WITH FASD 6923 04:33:28,400 --> 04:33:30,160 UNITED, IT MAKES A HUGE 6924 04:33:30,160 --> 04:33:31,280 DIFFERENCE. SOMETIMES IT IS HARD 6925 04:33:31,280 --> 04:33:33,760 TO MEASURE EXACTLY THAT IMPACT 6926 04:33:33,760 --> 04:33:35,840 BUT WE TRYING TO DO THAT MORE 6927 04:33:35,840 --> 04:33:38,800 AND MORE TO SHOW THAT IS WHAT 6928 04:33:38,800 --> 04:33:40,600 PARTICIPANTS SAY WAS THE MOST 6929 04:33:40,600 --> 04:33:41,280 IMPORTANT PART OF THE 6930 04:33:41,280 --> 04:33:44,080 PRESENTATION FOR THEM. 6931 04:33:44,080 --> 04:33:49,040 >> I KNOW FOR MYSELF WHEN I DO 6932 04:33:49,040 --> 04:33:52,120 PRESENTATIONS THROUGH WORK ONE 6933 04:33:52,120 --> 04:33:55,720 OF THE THINGS THAT HAS BEEN 6934 04:33:55,720 --> 04:33:57,480 IMPLEMENTED IS TRAININGS ARE NOT 6935 04:33:57,480 --> 04:34:01,320 DONE WITHOUT ME AS AN 6936 04:34:01,320 --> 04:34:03,600 INDIVIDUAL. JUST BECAUSE IT 6937 04:34:03,600 --> 04:34:06,640 SHOULDN'T BE DONE WITHOUT AN 6938 04:34:06,640 --> 04:34:10,560 INDIVIDUAL. BECAUSE THERE IS 6939 04:34:10,560 --> 04:34:12,720 SUCH THAT DIFFERENT PERSPECTIVE, 6940 04:34:12,720 --> 04:34:17,920 THERE IS KNOWING ABOUT FASD FROM 6941 04:34:17,920 --> 04:34:19,920 A CLINICAL POINT OF VIEW OR 6942 04:34:19,920 --> 04:34:20,880 SOMEONE WITH 50 YEARS EXPERIENCE 6943 04:34:20,880 --> 04:34:24,400 AND I AM NOT NEGATING THAT IN 6944 04:34:24,400 --> 04:34:30,040 ANY WAY. THERE IS ALSO A 6945 04:34:30,040 --> 04:34:33,520 DIFFERENT EXPERIENCE OF ME OR 6946 04:34:33,520 --> 04:34:39,040 REBECCA OR JUSTIN SAYING HEY 6947 04:34:39,040 --> 04:34:42,360 THIS WORKS FOR ME. IF 6948 04:34:42,360 --> 04:34:43,720 POTENTIALLY PEOPLE ARE LUCKY 6949 04:34:43,720 --> 04:34:45,680 ENOUGH TO HAVE MORE THAN ONE 6950 04:34:45,680 --> 04:34:47,680 INDIVIDUAL AT A TRAINING, THAT 6951 04:34:47,680 --> 04:34:49,720 EVEN MAKES IT MORE VALUABLE 6952 04:34:49,720 --> 04:34:51,680 BECAUSE I CAN GO HEY, THIS WORKS 6953 04:34:51,680 --> 04:34:54,160 FOR ME. REBECCA CAN GO COOL THAT 6954 04:34:54,160 --> 04:34:54,760 WORKS FOR YOU, THIS WORKS FOR 6955 04:34:54,760 --> 04:35:01,480 ME. AS An INDIVIDUAL I 6956 04:35:01,480 --> 04:35:02,760 WOULD LOVE FOR IT TO BE THE 6957 04:35:02,760 --> 04:35:05,680 ABSOLUTE STANDARD ACROSS NORTH 6958 04:35:05,680 --> 04:35:07,600 AMERICA THAT WHEN THERE IS A 6959 04:35:07,600 --> 04:35:12,200 TRAINING ON FASD, THERE IS 6960 04:35:12,200 --> 04:35:13,960 ALWAYS AN ADULT, IT SHOULDN'T BE 6961 04:35:13,960 --> 04:35:16,640 A WE NEED TO BRING IN ADULTS WHO 6962 04:35:16,640 --> 04:35:17,800 ENHANCE, IT SHOULD JUST BE THE 6963 04:35:17,800 --> 04:35:20,960 STANDARD. 6964 04:35:20,960 --> 04:35:23,200 >> THANKS, TO ADD SOMETHING WHAT 6965 04:35:23,200 --> 04:35:24,200 KAT SAID BECAUSE LAST WEEKEND 6966 04:35:24,200 --> 04:35:27,520 THERE WAS A THREE HOUR 6967 04:35:27,520 --> 04:35:29,200 EDUCATIONAL TRAINING ON FASD 6968 04:35:29,200 --> 04:35:30,680 SCHOOL STUFF DONE IN ONTARIO 6969 04:35:30,680 --> 04:35:32,360 THAT HAD ONE OF THE CHANGE 6970 04:35:32,360 --> 04:35:35,040 MAKERS FROM IRELAND AS ON IT. 6971 04:35:35,040 --> 04:35:38,800 AND SHE WAS ABLE TO DO SOMETHING 6972 04:35:38,800 --> 04:35:41,120 THAT I DON'T KNOW ANYBODY BUT A 6973 04:35:41,120 --> 04:35:42,520 PERSON WITH FASD COULD DO. SOME 6974 04:35:42,520 --> 04:35:44,400 PARENTS WERE DISCUSSING SOME 6975 04:35:44,400 --> 04:35:48,200 ISSUES AROUND THE PROBLEMS WITH 6976 04:35:48,200 --> 04:35:50,880 DISASTER BEDROOMS AND HOW THE 6977 04:35:50,880 --> 04:35:52,360 MESS CREEPS EVERYWHERE. SHE 6978 04:35:52,360 --> 04:35:53,840 EXPLAINED WHAT HAPPENED TO HER 6979 04:35:53,840 --> 04:35:56,560 AND HOW HER PARENTS APPROACHED 6980 04:35:56,560 --> 04:35:57,840 IT. SOMETHING SHE SAID NO ONE 6981 04:35:57,840 --> 04:35:59,320 UNDERSTOOD, THIS GOES TO A PIECE 6982 04:35:59,320 --> 04:36:00,920 AROUND MEMORY NOBODY THINKS 6983 04:36:00,920 --> 04:36:03,240 ABOUT. HER PARENTS WERE THROWING 6984 04:36:03,240 --> 04:36:05,200 OUT ALL THE QUOTE GARBAGE IN HER 6985 04:36:05,200 --> 04:36:06,520 ROOM AND SHE SAID IT WAS 6986 04:36:06,520 --> 04:36:07,920 CHRISTMAS WRAPPING PAPER FROM 6987 04:36:07,920 --> 04:36:10,280 TWO OR THREE YEARS, SHE HAD BUT 6988 04:36:10,280 --> 04:36:12,280 THEY DIDN'T UNDERSTAND THAT'S 6989 04:36:12,280 --> 04:36:13,720 HOW I COULD REMEMBER CHRISTMAS 6990 04:36:13,720 --> 04:36:16,120 AND I COULD REMEMBER THE GIFT. 6991 04:36:16,120 --> 04:36:18,160 THE TOY GOT BROKEN A LONG TIME 6992 04:36:18,160 --> 04:36:20,760 AGO BUT WHEN I SAW THE PAPER I 6993 04:36:20,760 --> 04:36:23,560 REMEMBERED IT AND HOW HAPPY I 6994 04:36:23,560 --> 04:36:25,240 WAS, AND IT WAS FOR HER THIS 6995 04:36:25,240 --> 04:36:27,800 MEMORY SUPPORT. THERE WAS 6996 04:36:27,800 --> 04:36:29,920 DEAD SILENCE OF THIS WHOLE GROUP 6997 04:36:29,920 --> 04:36:31,120 GOING I NEVER THOUGHT OF IT THAT 6998 04:36:31,120 --> 04:36:33,440 WAY AND THE TRAINERS HADN'T 6999 04:36:33,440 --> 04:36:34,440 THOUGHT ABOUT IT AND THE TRAINER 7000 04:36:34,440 --> 04:36:37,880 SAID OH MY GOD. YES THAT IS 7001 04:36:37,880 --> 04:36:39,000 WHAT, WE HAVE TO LOOK 7002 04:36:39,000 --> 04:36:40,800 DIFFERENTLY AND THAT IS 7003 04:36:40,800 --> 04:36:42,560 SOMETHING THAT ADULTS WITH FASD 7004 04:36:42,560 --> 04:36:46,040 BRING THAT ARE ABLE TO THEN LOOK 7005 04:36:46,040 --> 04:36:48,800 BACK AND INTERPRET WHAT THEY DID 7006 04:36:48,800 --> 04:36:50,120 AND WHY. I'M NOT SURE ANYBODY 7007 04:36:50,120 --> 04:36:56,560 ELSE CAN DO. I WANTED TO -- 7008 04:36:56,560 --> 04:36:59,400 >> I'M GOING TO WRAP US UP. I 7009 04:36:59,400 --> 04:37:00,840 THINK TATIANA YOU HAVE A QUICK 7010 04:37:00,840 --> 04:37:02,360 QUESTION YOU SAID 7011 04:37:02,360 --> 04:37:05,960 >> VERY QUICK, IT IS IN LINE 7012 04:37:05,960 --> 04:37:08,120 WITH WHAT JUST DISCUSSED, I WANT 7013 04:37:08,120 --> 04:37:11,240 TO ASK, NOT FOR TRAINING BUT 7014 04:37:11,240 --> 04:37:14,280 WHEN YOU (INAUDIBLE) PEOPLE FROM 7015 04:37:14,280 --> 04:37:16,240 SERVICES, OR SUPPORT, DO YOU 7016 04:37:16,240 --> 04:37:19,080 HAVE SOURCES WHEN YOU CAN MAKE 7017 04:37:19,080 --> 04:37:21,480 REFERRALS TO SELF-SUPPORT GROUPS 7018 04:37:21,480 --> 04:37:26,160 ONLINE GROUPS, IF YOU CAN JUST 7019 04:37:26,160 --> 04:37:29,480 QUICKLY AT THIS POINT. 7020 04:37:29,480 --> 04:37:32,320 >> THAT'S A THING WE GET A LOT. 7021 04:37:32,320 --> 04:37:35,680 WE SEND THEM TO FACEBOOK GROUPS, 7022 04:37:35,680 --> 04:37:37,080 SEND THEM TO FASD COLLABORATIVE 7023 04:37:37,080 --> 04:37:38,920 HAS A LIST OF SUPPORT GROUPS, WE 7024 04:37:38,920 --> 04:37:41,080 KNOW OF OTHERS WE HAVE SAVED WE 7025 04:37:41,080 --> 04:37:43,040 HAVE COME ACROSS. WE DEFINITELY 7026 04:37:43,040 --> 04:37:44,160 CONNECT WITH SUPPORT GROUPS. 7027 04:37:44,160 --> 04:37:47,680 BOTH INDIVIDUALS AND FAMILIES. 7028 04:37:47,680 --> 04:37:49,960 AND AS JENN SAID PROFESSIONALS 7029 04:37:49,960 --> 04:37:51,760 HAVE THE COLLABORATIVE GROUP. 7030 04:37:51,760 --> 04:37:54,280 >> ARE WE ABLE TO TAKE ONE LAST 7031 04:37:54,280 --> 04:37:59,760 QUESTION FROM KATHY HOTELLING? 7032 04:37:59,760 --> 04:38:02,800 >> IF IT IS BRIEF GO AHEAD OR 7033 04:38:02,800 --> 04:38:03,440 SAVE FOR LATER. 7034 04:38:03,440 --> 04:38:05,960 >> I CAN BE BRIEF, JUST A 7035 04:38:05,960 --> 04:38:09,720 COMMENT IN REGARD TO INVOLVEMENT 7036 04:38:09,720 --> 04:38:13,840 OF THOSE WITH FASD ON TRAININGS. 7037 04:38:13,840 --> 04:38:18,080 I ABSOLUTELY AGREE BUT I HAVE TO 7038 04:38:18,080 --> 04:38:21,680 SAY THAT VANCOUVER IS AN 7039 04:38:21,680 --> 04:38:22,680 EXCEPTION TO WHERE THERE ARE 7040 04:38:22,680 --> 04:38:24,680 INDIVIDUALS. I KNOW YOU CAN 7041 04:38:24,680 --> 04:38:26,440 SPEAK ANY PLACE THROUGH THE 7042 04:38:26,440 --> 04:38:29,720 POWER OF ZOOM BUT WE HARDLY HAVE 7043 04:38:29,720 --> 04:38:32,360 -- WE DONE HAVE THAT MANY PEOPLE 7044 04:38:32,360 --> 04:38:34,800 ADULTS DIAGNOSED SAY NOTHING 7045 04:38:34,800 --> 04:38:38,000 ABOUT THOSE THAT WOULD EVEN COME 7046 04:38:38,000 --> 04:38:40,040 CLOSE TO BEING COMFORTABLE IN 7047 04:38:40,040 --> 04:38:41,520 SPEAKING. MY DAUGHTER HAS 7048 04:38:41,520 --> 04:38:46,120 SPOKEN WITH ME. SHE NEEDS A LOT 7049 04:38:46,120 --> 04:38:49,560 OF WORK ON DOING THAT. BUT THAT 7050 04:38:49,560 --> 04:38:51,960 IS NOT -- Y'ALL ARE IN A UNIQUE 7051 04:38:51,960 --> 04:38:56,200 POSITION. PI APPLAUD JAN FOR ALL 7052 04:38:56,200 --> 04:38:58,400 SHE HAS DONE TO HELP YOU GET TO 7053 04:38:58,400 --> 04:38:59,600 THAT PLACE AND ALL THE EFFORTS 7054 04:38:59,600 --> 04:39:02,600 YOU EACH HAVE MADE. BUT YOU NEED 7055 04:39:02,600 --> 04:39:05,360 TO REALIZE YOU ARE SPECIAL. 7056 04:39:05,360 --> 04:39:08,800 >> THANK YOU ALL SO MUCH FOR 7057 04:39:08,800 --> 04:39:11,160 AGREEING TO SPEAK TO THIS GROUP. 7058 04:39:11,160 --> 04:39:13,120 I THINK ONE THING WE CAN ALL DO 7059 04:39:13,120 --> 04:39:16,880 WHETHER FEDERAL AGENCY OR 7060 04:39:16,880 --> 04:39:17,640 NON-PROFIT ORGANIZATION, 7061 04:39:17,640 --> 04:39:19,240 INDIVIDUAL, ANYONE ON THIS GROUP 7062 04:39:19,240 --> 04:39:22,680 IS TO HELP GET THE WORD OUT 7063 04:39:22,680 --> 04:39:24,480 ABOUT THE FASD UNITED NAVIGATOR 7064 04:39:24,480 --> 04:39:26,160 PROGRAM AND LINK TO IT FROM OUR 7065 04:39:26,160 --> 04:39:27,640 WEBSITES OR SOCIAL MEDIA OR WHAT 7066 04:39:27,640 --> 04:39:30,280 HAVE YOU. SO THANK YOU ALL AND I 7067 04:39:30,280 --> 04:39:31,720 KNOW WE HAVE CUT INTO THE BREAK 7068 04:39:31,720 --> 04:39:33,440 SO I WILL TURN IT BACK TO 7069 04:39:33,440 --> 04:39:33,680 TATIANA. 7070 04:39:33,680 --> 04:39:35,520 >> THANK YOU SO MUCH. GREAT 7071 04:39:35,520 --> 04:39:37,400 DISCUSSION. IT IS TIME FOR THE 7072 04:39:37,400 --> 04:39:40,880 BREAK. LET'S TAKE FIVE MINUTES, 7073 04:39:40,880 --> 04:39:43,200 SIX MINUTES. 3:20 WE ARE COMING 7074 04:39:43,200 --> 04:39:44,120 BACK. THANK YOU. 7075 04:39:44,120 --> 04:39:44,960 >> GOOD AFTERNOON, EVERYBODY. 7076 04:39:44,960 --> 04:39:46,360 THANK YOU FOR COMING BACK, IT 7077 04:39:46,360 --> 04:39:48,760 HAS BEEN BUSY DAY. WE APPRECIATE 7078 04:39:48,760 --> 04:39:52,080 YOU TO STAYING WITH US. AND WITH 7079 04:39:52,080 --> 04:39:55,720 THAT, WE CONTINUE NOW WITH THIS 7080 04:39:55,720 --> 04:39:57,720 SESSION OF FEDERAL AGENCY 7081 04:39:57,720 --> 04:40:01,720 REPORTS OF ACTIVITIES FROM 2022. 7082 04:40:01,720 --> 04:40:05,240 DURING THE SESSION WE WILL HEAR 7083 04:40:05,240 --> 04:40:07,880 FROM COMMITTEE MEMBERS WHO 7084 04:40:07,880 --> 04:40:09,200 REPRESENT NIH INSTITUTES, THE 7085 04:40:09,200 --> 04:40:10,840 REPORTS WILL BE GIVEN IN THE 7086 04:40:10,840 --> 04:40:12,880 ORDER INCLUDED ON THE AGENDA AND 7087 04:40:12,880 --> 04:40:14,920 THANK YOU, EVERYBODY FOR STAYING 7088 04:40:14,920 --> 04:40:18,280 ON THE AGENDA TODAY. WE KNOW WE 7089 04:40:18,280 --> 04:40:20,400 HAVE MANY PARTICIPANTS ON 7090 04:40:20,400 --> 04:40:21,440 VIDEOCAST AND WE WANT TO STAY ON 7091 04:40:21,440 --> 04:40:27,640 TIME. PLEASE HAVE QUESTIONS 7092 04:40:27,640 --> 04:40:29,200 READY FOR DISCUSSION. AT THE 7093 04:40:29,200 --> 04:40:30,560 END OF PRESENTATIONS WE WILL 7094 04:40:30,560 --> 04:40:33,400 HAVE TIME TO DISCUSS AND ASK 7095 04:40:33,400 --> 04:40:35,760 QUESTIONS, WITH THAT I WOULD 7096 04:40:35,760 --> 04:40:46,280 LIKE TO TURN OVER TO DR. BILL 7097 04:40:49,200 --> 04:40:57,800 DUNTY Ph.D. Ph.D. NIAAA. U 7098 04:40:57,800 --> 04:41:00,200 >> MY NAME IS BILL DUNTY, 7099 04:41:00,200 --> 04:41:02,600 PRESEARCH COORDINATOR FOR NIAAA, 7100 04:41:02,600 --> 04:41:07,320 AND UPDATE FOR FISCAL YEAR 2022 7101 04:41:07,320 --> 04:41:09,720 NIAAA WAS ESTABLISHED IN 1970 7102 04:41:09,720 --> 04:41:11,400 AND TODAY IS THE WORLD' LARGEST 7103 04:41:11,400 --> 04:41:13,920 FUNDER OF ALCOHOL RESEARCH. OUR 7104 04:41:13,920 --> 04:41:16,680 MISSION IS TO GENERATE AND 7105 04:41:16,680 --> 04:41:17,360 DISSEMINATE FUNDAMENTAL 7106 04:41:17,360 --> 04:41:18,520 KNOWLEDGE ABOUT EFFECTS OF 7107 04:41:18,520 --> 04:41:19,840 ALCOHOL ON HUMAN HEALTH AND WELL 7108 04:41:19,840 --> 04:41:21,080 BEING AND TO APPLY THAT 7109 04:41:21,080 --> 04:41:22,640 KNOWLEDGE TO IMPROVE THE 7110 04:41:22,640 --> 04:41:24,320 DIAGNOSIS, PREVENTION AND 7111 04:41:24,320 --> 04:41:25,560 TREATMENT OF ALCOHOL RELATED 7112 04:41:25,560 --> 04:41:30,640 PROBLEMS ACROSS THE LIFE SPAN. 7113 04:41:30,640 --> 04:41:33,200 NIAAA SUPPORTS FOUR MAIN AREAS 7114 04:41:33,200 --> 04:41:35,200 OF FASD RESEARCH. THROUGH OUR 7115 04:41:35,200 --> 04:41:37,040 GRANTS AND OTHER ACTIVITIES, WE 7116 04:41:37,040 --> 04:41:39,440 SUPPORT RESEARCH PROJECTS IN THE 7117 04:41:39,440 --> 04:41:42,960 AREAS OF FASD ETIOLOGY, 7118 04:41:42,960 --> 04:41:43,560 INTERVENTION, PREVENTION AND 7119 04:41:43,560 --> 04:41:48,720 DIAGNOSIS. OVER THE LAST FIVE 7120 04:41:48,720 --> 04:41:51,080 YEARS NIAAA FUNDING FOR RESEARCH 7121 04:41:51,080 --> 04:41:53,600 AND TRAINING GRANTS HAS BEEN ON 7122 04:41:53,600 --> 04:41:56,760 THE RISE WITH APPROXIMATELY 442 7123 04:41:56,760 --> 04:41:58,480 MILLION ALLOTTED FOR THOSE 7124 04:41:58,480 --> 04:42:02,120 ACTIVITIES IN FISCAL YEAR 2022. 7125 04:42:02,120 --> 04:42:04,440 OVER THAT SAME PERIOD OF TIME, 7126 04:42:04,440 --> 04:42:06,400 AWARDS TO FASD RESEARCHERS HAS 7127 04:42:06,400 --> 04:42:08,600 REMAINED RELATIVELY STEADY MAKE 7128 04:42:08,600 --> 04:42:12,080 UP NEARLY 8% OF NIAAA ENTIRE 7129 04:42:12,080 --> 04:42:17,920 RESEARCH AND TRAINING BUDGET 7130 04:42:17,920 --> 04:42:20,800 FY 2022 APPROXIMATELY 7.9% OF 7131 04:42:20,800 --> 04:42:23,680 OUR EXTRAMURAL DOLLARS 7132 04:42:23,680 --> 04:42:28,400 REPRESENTING ABOUT 35 MILLION 7133 04:42:28,400 --> 04:42:31,480 SUPPORTED 101 FASD GRANTS, 24 OF 7134 04:42:31,480 --> 04:42:33,280 WHICH WERE NEW AWARDS MADE IN 7135 04:42:33,280 --> 04:42:36,320 2022. TO LEARN MORE ABOUT 7136 04:42:36,320 --> 04:42:37,840 RESEARCH PROJECTS THEMSELVES I 7137 04:42:37,840 --> 04:42:40,400 SUGGEST VISITING THE NIH 7138 04:42:40,400 --> 04:42:42,600 REPORTER WEBSITE IN SEARCHING 7139 04:42:42,600 --> 04:42:45,040 FOR FETAL ALCOHOL SPECTRUM 7140 04:42:45,040 --> 04:42:46,240 DISORDERS UNDER THE NIH SPENDING 7141 04:42:46,240 --> 04:42:50,360 CATEGORY PULL DOWN. AMONG 7142 04:42:50,360 --> 04:42:52,480 GRANTS RELATED TO ETIOLOGY THIS 7143 04:42:52,480 --> 04:42:53,920 TABLE GIVES YOU EXAMPLES OF THE 7144 04:42:53,920 --> 04:42:56,280 RESEARCH TOPICS COVERED. THESE 7145 04:42:56,280 --> 04:42:59,320 INCLUDE THE IMPACT OF PAE OR 7146 04:42:59,320 --> 04:43:01,000 PRE-NATAL ALCOHOL EXPOSURE ON 7147 04:43:01,000 --> 04:43:04,120 STEM CELLS AND CELLULAR AGING. 7148 04:43:04,120 --> 04:43:05,960 AND THE POSSIBLE CONTRIBUTIONS 7149 04:43:05,960 --> 04:43:08,120 TO EARLY ONSET DEMENTIA AND 7150 04:43:08,120 --> 04:43:11,200 PREMATURE AGING IN ADULTS WITH 7151 04:43:11,200 --> 04:43:14,400 FASD. STUDIES ON CARDIOVASCULAR 7152 04:43:14,400 --> 04:43:16,240 DISEASE IN INDIVIDUALS WITH 7153 04:43:16,240 --> 04:43:18,640 FASD, AND MECHANISMS BY WHICH 7154 04:43:18,640 --> 04:43:20,880 ALCOHOL AND MARIJUANA EXPOSURE 7155 04:43:20,880 --> 04:43:22,680 IN UTERO MAY PREDISPOSE 7156 04:43:22,680 --> 04:43:23,880 INDIVIDUALS TO FUTURE ALCOHOL 7157 04:43:23,880 --> 04:43:29,360 MISUSE. AMONG INTERVENTION 7158 04:43:29,360 --> 04:43:31,360 GRANTS THIS UO1 PROJECT 7159 04:43:31,360 --> 04:43:33,520 EVALUATES EFFICACY OF COMBINING 7160 04:43:33,520 --> 04:43:35,720 COMPUTERIZED COGNITIVE TRAINING 7161 04:43:35,720 --> 04:43:37,080 AND LOW VOLTAGE BRAIN 7162 04:43:37,080 --> 04:43:38,120 STIMULATION TO IMPROVE ATTENTION 7163 04:43:38,120 --> 04:43:41,200 AND WORKING MEMORY IN CHILDREN 7164 04:43:41,200 --> 04:43:45,200 WITH FASD. AND AMONG OUR NEW 7165 04:43:45,200 --> 04:43:46,080 PREVENTION GRANTS WE HAVE 7166 04:43:46,080 --> 04:43:48,080 INVESTIGATORS SEEKING TO ADAPT A 7167 04:43:48,080 --> 04:43:49,840 BEHAVIORAL INTERVENTION TO 7168 04:43:49,840 --> 04:43:52,840 DECREASE POLYSUBSTANCE USE OF 7169 04:43:52,840 --> 04:43:55,400 ALCOHOL AND TOBACCO OR CANNABIS 7170 04:43:55,400 --> 04:43:57,720 DURING PREGNANCY AND LACTATION 7171 04:43:57,720 --> 04:44:00,160 FOR WOMEN IN SOUTH AFRICA. AND 7172 04:44:00,160 --> 04:44:03,200 THE USE OF A COMPUTER DELIVERED 7173 04:44:03,200 --> 04:44:04,320 BRIEF ALCOHOL INTERVENTION THAT 7174 04:44:04,320 --> 04:44:06,720 IS REINFORCED BY NURSES IN 7175 04:44:06,720 --> 04:44:09,400 PRE-NATAL CARE CLINICS IN THE 7176 04:44:09,400 --> 04:44:12,960 UNITED STATES. SOMETIMES 7177 04:44:12,960 --> 04:44:14,480 PROJECTS MAY INCLUDE RESEARCH 7178 04:44:14,480 --> 04:44:16,920 ACROSS MULTIPLE AREAS. FOR 7179 04:44:16,920 --> 04:44:19,600 EXAMPLE, GRANTS FUNDING BOTH 7180 04:44:19,600 --> 04:44:22,560 ETIOLOGY AND INTERVENTION 7181 04:44:22,560 --> 04:44:24,440 RESEARCH TO TARGET MOLECULAR 7182 04:44:24,440 --> 04:44:25,920 PATHWAYS TO RESCUE ALCOHOL 7183 04:44:25,920 --> 04:44:30,120 INDUCED BIRTH DEFECTS IN MICE. 7184 04:44:30,120 --> 04:44:31,640 REDUCE MICROGLIA ACTIVATION 7185 04:44:31,640 --> 04:44:35,120 CAUSED BY PRE-NATAL ALCOHOL 7186 04:44:35,120 --> 04:44:37,120 EXPOSURE IN THE BRAIN TO RESTORE 7187 04:44:37,120 --> 04:44:39,120 SYNAPTIC FUNCTION AND RESCUE 7188 04:44:39,120 --> 04:44:40,120 BEHAVIORAL DEFICITS AND STUDIES 7189 04:44:40,120 --> 04:44:43,520 TO REDUCE MICROGLIA MEDIATED 7190 04:44:43,520 --> 04:44:44,800 INFLAMMATION USING A SMALL 7191 04:44:44,800 --> 04:44:47,160 MOLECULE INHIBITOR AS POTENTIAL 7192 04:44:47,160 --> 04:44:51,240 INTERVENTION IN A MOUSE MODEL. 7193 04:44:51,240 --> 04:44:52,400 NEXT FEW SLIDES I WANT TO TAKE A 7194 04:44:52,400 --> 04:44:55,720 MOMENT TO HIGHLIGHT THE LARGER 7195 04:44:55,720 --> 04:45:04,280 CENTERS AND RESEARCH CONSORTIA 7196 04:45:04,280 --> 04:45:10,280 FASD. CIFASD IS FOCUSED ON 7197 04:45:10,280 --> 04:45:11,920 IMPROVING FASD DIAGNOSES ACROSS 7198 04:45:11,920 --> 04:45:14,280 THE LIFE SPANS AND HEALTH 7199 04:45:14,280 --> 04:45:15,360 OUTCOMES IN INDIVIDUALS WITH 7200 04:45:15,360 --> 04:45:16,920 FASD. IT WAS RENEWED ANOTHER 7201 04:45:16,920 --> 04:45:21,680 FIVE YEARS IN FY 2022. AMONG 7202 04:45:21,680 --> 04:45:23,880 SPECIALIZED RESEARCH CENTERS, 7203 04:45:23,880 --> 04:45:26,320 NMARC AT THE UNIVERSITY 7204 04:45:26,320 --> 04:45:28,400 OF MEXICO CONSISTS OF BOTH 7205 04:45:28,400 --> 04:45:29,200 PRE-CLINICAL AND CLINICAL 7206 04:45:29,200 --> 04:45:31,400 STUDIES, ADDRESSING THE 7207 04:45:31,400 --> 04:45:32,920 NEUROBIOLOGICAL MECHANISMS 7208 04:45:32,920 --> 04:45:34,440 UNDERLYING THE BEHAVIORAL 7209 04:45:34,440 --> 04:45:39,520 PROBLEMS ASSOCIATED WITH FASD. 7210 04:45:39,520 --> 04:45:41,200 THE DEVELOPMENTAL EXPOSURE 7211 04:45:41,200 --> 04:45:43,520 ALCOHOL RESEARCH CENTER AT 7212 04:45:43,520 --> 04:45:46,160 BINGHAMTON UNIVERSITY HAS A MAIN 7213 04:45:46,160 --> 04:45:48,800 RESEARCH PROJECT FOCUSED ON PAE 7214 04:45:48,800 --> 04:45:50,440 FOCUSED ON ANIMAL MODELS TO 7215 04:45:50,440 --> 04:45:51,920 UNDERSTAND THE FUNCTIONAL AND 7216 04:45:51,920 --> 04:45:54,280 NEURAL EFFECTS OF ALCOHOL 7217 04:45:54,280 --> 04:45:55,560 EXPOSURE THROUGHOUT BRAIN 7218 04:45:55,560 --> 04:45:57,800 DEVELOPMENT. AND AMONG OUR 7219 04:45:57,800 --> 04:46:01,000 LARGER SPECIALIZED CENTERS N 7220 04:46:01,000 --> 04:46:02,800 CARE WHICH STANDS FOR THE NATIVE 7221 04:46:02,800 --> 04:46:05,440 CENTER FOR ALCOHOL RESEARCH AND 7222 04:46:05,440 --> 04:46:07,440 EDUCATION, HAS A MAIN PROJECT ON 7223 04:46:07,440 --> 04:46:09,320 PREVENTING ALCOHOL EXPOSED 7224 04:46:09,320 --> 04:46:10,640 PREGNANCIES, AMONG NATIVE 7225 04:46:10,640 --> 04:46:14,880 AMERICAN WOMEN IN SOUTH DAKOTA. 7226 04:46:14,880 --> 04:46:16,360 FOR MORE INFORMATION ON ANY OF 7227 04:46:16,360 --> 04:46:20,440 THESE CONSORTIA OR CENTERS I 7228 04:46:20,440 --> 04:46:23,200 ADVISE YOU TO VISIT NIAAA HOME 7229 04:46:23,200 --> 04:46:24,480 PAGE ON FASD LISTED AT THE 7230 04:46:24,480 --> 04:46:29,560 BOTTOM OF THE SLIDE. CURRENTLY 7231 04:46:29,560 --> 04:46:30,880 NIAAA HAS PUBLISHED OR 7232 04:46:30,880 --> 04:46:32,400 PARTICIPATES IN FUNDING 7233 04:46:32,400 --> 04:46:34,320 OPPORTUNITY ANNOUNCEMENTS TO 7234 04:46:34,320 --> 04:46:37,960 ENCOURAGE RESEARCH ON PREGNANCY, 7235 04:46:37,960 --> 04:46:40,640 AND FASD. THEY INVOLVE RESEARCH 7236 04:46:40,640 --> 04:46:41,840 ON NOVEL INTERVENTION AND 7237 04:46:41,840 --> 04:46:45,400 PREVENTION APPROACHES FOR FASD 7238 04:46:45,400 --> 04:46:47,680 ACROSS THE LIFE SPAN. THE 7239 04:46:47,680 --> 04:46:49,760 PEDIATRIC HEALTHCARE TRANSITION 7240 04:46:49,760 --> 04:46:51,320 FOR YOUTH WITH CHRONIC MEDICAL 7241 04:46:51,320 --> 04:46:52,680 CONDITIONS AND THOSE WITH 7242 04:46:52,680 --> 04:46:54,160 INTELLECTUAL AND DEVELOPMENTAL 7243 04:46:54,160 --> 04:46:58,320 DISABILITIES. EMERGING ISSUES OF 7244 04:46:58,320 --> 04:47:00,000 COVID-19 RELATED TO THE HEALTH 7245 04:47:00,000 --> 04:47:02,240 AND WELL BEING OF WOMEN CHILDREN 7246 04:47:02,240 --> 04:47:06,560 AND INDIVIDUALS WITH PHYSICAL 7247 04:47:06,560 --> 04:47:07,240 AND/OR INTELLECTUAL 7248 04:47:07,240 --> 04:47:08,600 DISABILITIES, ADDRESSING GAPS IN 7249 04:47:08,600 --> 04:47:10,520 EVIDENCE BASED SCREENING 7250 04:47:10,520 --> 04:47:11,600 INCLUDING THE SCREENING OF 7251 04:47:11,600 --> 04:47:14,680 ALCOHOL USE DURING PREGNANCY, 7252 04:47:14,680 --> 04:47:18,560 AND FOR FASD. AND SECONDARY DATA 7253 04:47:18,560 --> 04:47:20,680 ANALYSIS OF EXISTING ALCOHOL 7254 04:47:20,680 --> 04:47:23,480 RELATED DATA SETS. FOR MORE 7255 04:47:23,480 --> 04:47:24,560 INFORMATION ON THESE 7256 04:47:24,560 --> 04:47:27,080 ANNOUNCEMENTS YOU CAN VISIT 7257 04:47:27,080 --> 04:47:33,160 GRANTS.NIH.GOV. PAST OCTOBER 7258 04:47:33,160 --> 04:47:35,440 NIAAA ALONG WITH INTERAGENCY 7259 04:47:35,440 --> 04:47:37,760 WORKING GROUP UNDER DRUG USE IN 7260 04:47:37,760 --> 04:47:39,800 WOMEN AND GIRLS POSTED A TWO DAY 7261 04:47:39,800 --> 04:47:41,720 SCIENTIFIC CONFERENCE TO REVIEW 7262 04:47:41,720 --> 04:47:43,320 KEY FINDINGS, FROM CURRENT 7263 04:47:43,320 --> 04:47:45,760 RESEARCH ON THE CAUSES, 7264 04:47:45,760 --> 04:47:47,240 CONSEQUENCES PREVENTION AND 7265 04:47:47,240 --> 04:47:50,400 TREATMENT OF HARMFUL ALCOHOL 7266 04:47:50,400 --> 04:47:53,200 OPIOID AND OTHER SUBSTANCE USE 7267 04:47:53,200 --> 04:47:54,960 AMONG WOMEN AND GIRLS AND BEST 7268 04:47:54,960 --> 04:47:56,000 APPROACHES TO SUSTAINING 7269 04:47:56,000 --> 04:47:59,880 RECOVERY. THE TARGET AUDIENCE 7270 04:47:59,880 --> 04:48:02,120 CONSISTED OF GENERAL HEALTHCARE 7271 04:48:02,120 --> 04:48:05,200 PROVIDERS, ADDICTION PREVENTION 7272 04:48:05,200 --> 04:48:06,160 AND TREATMENT PRONAILINGSES, 7273 04:48:06,160 --> 04:48:09,360 POLICY MAKERS, ADDICTION 7274 04:48:09,360 --> 04:48:11,160 RESEARCHERS, EDUCATORS AND FAITH 7275 04:48:11,160 --> 04:48:14,800 AND COMMUNITY LEADERS. THE OVER 7276 04:48:14,800 --> 04:48:15,720 ARCHING GOAL OF THE CONFERENCE 7277 04:48:15,720 --> 04:48:16,960 WAS TO IDENTIFY IMPORTANT 7278 04:48:16,960 --> 04:48:18,960 DIRECTIONS FOR FUTURE RESEARCH 7279 04:48:18,960 --> 04:48:20,960 AND TO HIGHLIGHT STRATEGIES THAT 7280 04:48:20,960 --> 04:48:23,280 ARE ALREADY WORKING TO ADDRESS 7281 04:48:23,280 --> 04:48:25,440 THESE PROBLEMS WITH THE GOAL OF 7282 04:48:25,440 --> 04:48:27,400 REPLICATING AND BRINGING 7283 04:48:27,400 --> 04:48:29,120 EFFECTIVE INTERVENTIONS TO 7284 04:48:29,120 --> 04:48:34,160 POPULATION SCALE. HERE I LIST 7285 04:48:34,160 --> 04:48:35,320 PARTS OF THE PROGRAM RELATED TO 7286 04:48:35,320 --> 04:48:38,920 ALCOHOL USE DURING PREGNANCY. 7287 04:48:38,920 --> 04:48:41,880 AND FASD. THESE INCLUDED A PANEL 7288 04:48:41,880 --> 04:48:43,320 ENTITLED MODEL PROGRAMS FOR 7289 04:48:43,320 --> 04:48:44,640 MOTHERS WITH ALCOHOL USE 7290 04:48:44,640 --> 04:48:46,720 DISORDER, OTHER SUBSTANCE USE 7291 04:48:46,720 --> 04:48:48,200 DISORDERS IN CHILDREN WITH 7292 04:48:48,200 --> 04:48:52,200 PRE-NATAL SUBSTANCE EXPOSURE. 7293 04:48:52,200 --> 04:48:55,280 AND TWO PRESENTATIONS ON MODELS 7294 04:48:55,280 --> 04:48:56,880 THAT PREVENT FASD BY SUPPORTING 7295 04:48:56,880 --> 04:49:00,320 WOMEN LIVING WITH SUBSTANCE USE 7296 04:49:00,320 --> 04:49:02,080 DISORDERS, AND ON ADVOCACY FOR 7297 04:49:02,080 --> 04:49:06,920 THE FASD COMMUNITY. AS WELL AS 7298 04:49:06,920 --> 04:49:08,920 BREAK-OUT SESSIONS ON RELEVANT 7299 04:49:08,920 --> 04:49:12,880 HIGH PRIORITY POPULATIONS. THIS 7300 04:49:12,880 --> 04:49:15,120 MEETING WOULD NOT HAVE BEEN 7301 04:49:15,120 --> 04:49:16,680 POSSIBLE WITHOUT MULTIPLE 7302 04:49:16,680 --> 04:49:20,320 SPONSORS AND PARTNERS MANY WHICH 7303 04:49:20,320 --> 04:49:21,760 PARTICIPATE IN THE ICCFASD. AND 7304 04:49:21,760 --> 04:49:24,800 IF YOU MISSED PORTIONS OF THE 7305 04:49:24,800 --> 04:49:27,160 MEETING A RECORDING AND SUMMARY 7306 04:49:27,160 --> 04:49:29,520 OF THE CONFERENCE WILL BE POSTED 7307 04:49:29,520 --> 04:49:35,080 ON NIAAA'S WEBSITE. ENOUGH FY 7308 04:49:35,080 --> 04:49:37,720 2022 NIAAA LAUNCH A NEW ONLINE 7309 04:49:37,720 --> 04:49:39,960 EDUCATIONAL RESOURCE CALLED THE 7310 04:49:39,960 --> 04:49:41,640 HEALTHCARE PROFESSIONALS CORE 7311 04:49:41,640 --> 04:49:43,400 RESOURCE ON ALCOHOL. WHICH 7312 04:49:43,400 --> 04:49:45,640 COVERS THE BASICS OF WHAT EVERY 7313 04:49:45,640 --> 04:49:46,760 HEALTHCARE PROFESSIONAL NEEDS TO 7314 04:49:46,760 --> 04:49:49,440 KNOW ABOUT WHOLE, INCLUDING THE 7315 04:49:49,440 --> 04:49:51,680 WAYS IT CAN IMPACT THE PATIENT'S 7316 04:49:51,680 --> 04:49:53,480 HEALTH AND ASSISTANCE WITH 7317 04:49:53,480 --> 04:49:56,280 ALCOHOL SCREENING AND 7318 04:49:56,280 --> 04:49:58,840 INTERVENTION. IT WAS PRACTICING 7319 04:49:58,840 --> 04:50:00,640 PHYSICIANS IN CLINICAL 7320 04:50:00,640 --> 04:50:03,240 PSYCHOLOGISTS WITH BUSY 7321 04:50:03,240 --> 04:50:04,960 CLINICIANS IN MIND. THE RESOURCE 7322 04:50:04,960 --> 04:50:07,920 OFFERS FREE CONTINUING EDUCATION 7323 04:50:07,920 --> 04:50:09,640 CREDITS, AND I HAVE MARKED HERE 7324 04:50:09,640 --> 04:50:11,320 WITH RED STARS THOSE ARTICLES 7325 04:50:11,320 --> 04:50:13,520 THAT ADDRESS PRE-NATAL ALCOHOL 7326 04:50:13,520 --> 04:50:15,480 EXPOSURE AND FASD IN THE CORE 7327 04:50:15,480 --> 04:50:22,560 RESOURCE. FINALLY NIAAA 7328 04:50:22,560 --> 04:50:24,360 PARTICIPATES AND PROVIDES 7329 04:50:24,360 --> 04:50:27,040 SUPPORT FOR SEVERAL NIH WIDE 7330 04:50:27,040 --> 04:50:28,800 PEDIATRIC INITIATIVES. THESE 7331 04:50:28,800 --> 04:50:31,440 INCLUDE THE ADOLESCENT BRAIN AN 7332 04:50:31,440 --> 04:50:36,440 COGNITIVE DEVELOPMENT STUDY, OR 7333 04:50:36,440 --> 04:50:38,520 ABCD, THE GABRIELLA MILLER KIDS 7334 04:50:38,520 --> 04:50:40,160 FIRST PEDIATRIC RESEARCH 7335 04:50:40,160 --> 04:50:42,200 PROGRAM, AND THE HEALTHY BRAIN 7336 04:50:42,200 --> 04:50:45,520 AND CHILD DEVELOPMENT STUDY OR 7337 04:50:45,520 --> 04:50:48,120 HBCD, OF WHICH YOU WILL HEAR 7338 04:50:48,120 --> 04:50:49,760 MORE ABOUT IN A SUBSEQUENT 7339 04:50:49,760 --> 04:50:53,240 PRESENTATION. . 7340 04:50:53,240 --> 04:50:55,600 WITH THAT, THANK YOU FOR YOUR 7341 04:50:55,600 --> 04:50:57,400 ATTENTION. FOR MORE INFORMATION 7342 04:50:57,400 --> 04:50:59,760 ON NIAAA'S FASD RESEARCH 7343 04:50:59,760 --> 04:51:01,640 PROGRAM, I ENCOURAGE YOU TO TO 7344 04:51:01,640 --> 04:51:12,160 VISIT THE URL LISTED BELOW. 7345 04:51:16,240 --> 04:51:18,480 >> I'M TRACY KING AND I'M 7346 04:51:18,480 --> 04:51:20,560 MEDICAL OFFICER AND INTELLECTUAL 7347 04:51:20,560 --> 04:51:21,520 DEVELOPMENTAL DISABILITIES 7348 04:51:21,520 --> 04:51:23,560 BRANCH AT THE EUNICE KENNEDY 7349 04:51:23,560 --> 04:51:24,640 SHRIVER NATIONAL INSTITUTE OF 7350 04:51:24,640 --> 04:51:26,360 CHILD HEALTH AND HUMAN 7351 04:51:26,360 --> 04:51:28,440 DEVELOPMENT OR NICHD. I WOULD 7352 04:51:28,440 --> 04:51:30,280 LIKE TO THANK THE NATIONAL 7353 04:51:30,280 --> 04:51:32,840 INSTITUTE ON ALCOHOL ABUSE AN 7354 04:51:32,840 --> 04:51:34,600 ALCOHOLISM OR NIAAA AND THE 7355 04:51:34,600 --> 04:51:35,600 INTERAGENCY COORDINATING 7356 04:51:35,600 --> 04:51:37,360 COMMITTEE ON FETAL ALCOHOL 7357 04:51:37,360 --> 04:51:41,120 SPECTRAL DISORDERS OR ICCFASD 7358 04:51:41,120 --> 04:51:44,400 FOR THE OPPORTUNITY TO DISCUSS 7359 04:51:44,400 --> 04:51:45,320 THE NICHD ACTIVITIES WITH 7360 04:51:45,320 --> 04:51:46,880 RELEVANCE TO FETAL ALCOHOL 7361 04:51:46,880 --> 04:51:49,480 SPECTRUM DISORDERS. FIRST I 7362 04:51:49,480 --> 04:51:51,280 WOULD LIKE TO GIVE YOU A BRIEF 7363 04:51:51,280 --> 04:51:52,480 OVERVIEW OF NICHD AND THE 7364 04:51:52,480 --> 04:51:54,960 RESEARCH WE SUPPORT. OUR 7365 04:51:54,960 --> 04:51:57,360 INSTITUTE IS NOTABLE FOR ITS 7366 04:51:57,360 --> 04:51:58,920 BREADTH MISSION AND SCOPE. WE 7367 04:51:58,920 --> 04:52:00,600 FUND A SPECTRUM OF BASIC 7368 04:52:00,600 --> 04:52:01,600 TRANSLATIONAL AND CLINICAL 7369 04:52:01,600 --> 04:52:03,560 RESEARCH ACROSS MULTIPLE AREAS 7370 04:52:03,560 --> 04:52:05,480 OF SCIENCE. THIS ENCOMPASSES A 7371 04:52:05,480 --> 04:52:06,800 BROAD RANGE OF CHILD HEALTH 7372 04:52:06,800 --> 04:52:08,720 RESEARCH INCLUDING DEVELOPMENT 7373 04:52:08,720 --> 04:52:10,680 AND BEHAVIOR INTELLECTUAL 7374 04:52:10,680 --> 04:52:12,400 DEVELOPMENTAL DISABILITIES, 7375 04:52:12,400 --> 04:52:13,640 GROWTH IN NUTRITION AND TRAUMA 7376 04:52:13,640 --> 04:52:16,000 AND CRITICAL CARE. WE ALSO FUND 7377 04:52:16,000 --> 04:52:18,880 RESEARCH ADDRESSING PRE-NATAL 7378 04:52:18,880 --> 04:52:20,320 PERINATAL AND NEONATAL HEALTH 7379 04:52:20,320 --> 04:52:22,200 WHICH OBVIOUSLY HAS POTENTIAL 7380 04:52:22,200 --> 04:52:25,000 RELEVANCE TO FASD. HOWEVER NICHD 7381 04:52:25,000 --> 04:52:26,600 IS ALSO MAJOR FUNDER OF RESEARCH 7382 04:52:26,600 --> 04:52:28,480 ON PREGNANCY AND MATERNAL HEALTH 7383 04:52:28,480 --> 04:52:30,720 AS WELL AS MULTIPLE ASPECTS OF 7384 04:52:30,720 --> 04:52:31,960 REPRODUCTIVE HEALTH INCLUDING 7385 04:52:31,960 --> 04:52:35,960 THE AREAS LISTED HERE. FINALLY 7386 04:52:35,960 --> 04:52:37,760 NICHD HAS AS THE NATIONAL CENTER 7387 04:52:37,760 --> 04:52:39,400 FOR MEDICAL REHABILITATION 7388 04:52:39,400 --> 04:52:43,040 RESEARCH OR NCMRR WHICH SUPPORTS 7389 04:52:43,040 --> 04:52:44,040 REHABILITATION RESEARCH ACROSS 7390 04:52:44,040 --> 04:52:49,280 THE LIFE SPAN. AT NICHD WE FUND 7391 04:52:49,280 --> 04:52:51,240 FEW AWARDS FOCUSED SPECIFICALLY 7392 04:52:51,240 --> 04:52:53,360 ON ALCOHOL ABUSE DURING 7393 04:52:53,360 --> 04:52:54,880 PREGNANCY OR SPECIFICALLY ON 7394 04:52:54,880 --> 04:52:57,080 CHILDREN WITH FASD. HOWEVER WE 7395 04:52:57,080 --> 04:52:59,440 ARE CURRENTLY INVOLVED IN 7396 04:52:59,440 --> 04:53:01,000 MULTIPLE EFFORTS THAT HAVE 7397 04:53:01,000 --> 04:53:02,320 POTENTIAL RELEVANCE TO FASD. 7398 04:53:02,320 --> 04:53:05,320 THESE INCLUDE THE IMPROVE 7399 04:53:05,320 --> 04:53:06,680 INITIATIVE WHICH STANDS FOR 7400 04:53:06,680 --> 04:53:07,920 IMPLEMENTING MATERNAL HEALTH AND 7401 04:53:07,920 --> 04:53:08,840 PREGNANCY OUTCOMES VISION FOR 7402 04:53:08,840 --> 04:53:13,400 EVERYONE. IT IS FOCUSED ON 7403 04:53:13,400 --> 04:53:14,040 ADDRESSING MATERNAL MORBIDITY 7404 04:53:14,040 --> 04:53:15,560 AND MORTALITY. I ALSO LIKE TO 7405 04:53:15,560 --> 04:53:17,480 SHARE SOME INFORMATION ABOUT 7406 04:53:17,480 --> 04:53:19,880 NICHD RECENT EFFORTS TO ADDRESS 7407 04:53:19,880 --> 04:53:21,440 ABLEISM WHICH IS DISCRIMINATION 7408 04:53:21,440 --> 04:53:23,040 AGAINST INDIVIDUALS WITH 7409 04:53:23,040 --> 04:53:26,240 DISABILITIES. IN MEDICINE AND 7410 04:53:26,240 --> 04:53:28,880 CLINICAL RESEARCH. FIRST I WOULD 7411 04:53:28,880 --> 04:53:32,760 LIKE TO DISCUSS THE IMPROVE 7412 04:53:32,760 --> 04:53:35,880 INITIATIVE. AS THE NAME 7413 04:53:35,880 --> 04:53:37,920 SUGGESTS, THE IMPROVE INITIATIVE 7414 04:53:37,920 --> 04:53:39,280 IS AN ONGOING NIH WIDE 7415 04:53:39,280 --> 04:53:41,200 INITIATIVE TO ADDRESS HIGH RATES 7416 04:53:41,200 --> 04:53:42,160 OF PREGNANCY RELATED 7417 04:53:42,160 --> 04:53:43,800 COMPLICATION AND DEATH IN THE 7418 04:53:43,800 --> 04:53:46,480 U.S. WHICH WE ALSO REFER TO 7419 04:53:46,480 --> 04:53:47,680 ASTHMA TERM MORBIDITY AND 7420 04:53:47,680 --> 04:53:48,920 MORTALITY. THIS INITIATIVE 7421 04:53:48,920 --> 04:53:52,440 ENCOMPASSES FOUNDATIONAL BIOLOGY 7422 04:53:52,440 --> 04:53:53,800 AND SOCIAL BIOBEHAVIORAL 7423 04:53:53,800 --> 04:53:55,840 RESEARCH AND COMMUNITY PARTNERS 7424 04:53:55,840 --> 04:53:57,960 ARE KEY VOICES ASSESSING NEEDS 7425 04:53:57,960 --> 04:53:59,000 AND IMPLEMENTING INTERVENTION. 7426 04:53:59,000 --> 04:54:02,320 IT IS CURRENTLY LED BY NICHD, 7427 04:54:02,320 --> 04:54:04,640 THE NIH OFFICE OF RESEARCH ON 7428 04:54:04,640 --> 04:54:07,440 WOMEN'S HEALTH, OR ORWH. AND THE 7429 04:54:07,440 --> 04:54:08,320 NATIONAL INSTITUTE OF NURSING 7430 04:54:08,320 --> 04:54:12,400 RESEARCH. OR NINR. ITS 7431 04:54:12,400 --> 04:54:14,320 PARTICIPANTS INCLUDES OVER 30 7432 04:54:14,320 --> 04:54:16,520 NIH INSTITUTES CENTERS AND 7433 04:54:16,520 --> 04:54:18,600 OFFICES INCLUDING NIAAA AND 7434 04:54:18,600 --> 04:54:20,080 MULTIPLE OTHER NIH INSTITUTES 7435 04:54:20,080 --> 04:54:24,920 THAT ARE PART OF ICCFASD. THE 7436 04:54:24,920 --> 04:54:26,600 GOALS OF THE IMPROVE INITIATIVE 7437 04:54:26,600 --> 04:54:28,720 ARE TO ADDRESS LEADING CAUSES OF 7438 04:54:28,720 --> 04:54:32,680 PREGNANCY RELATED MATERNAL 7439 04:54:32,680 --> 04:54:33,280 MORTALITY MORBIDITY MORTALITY 7440 04:54:33,280 --> 04:54:35,280 INCLUDING ILLNESS BY BUILDING 7441 04:54:35,280 --> 04:54:36,920 EVIDENCE CASE FOR IMPROVED CARE 7442 04:54:36,920 --> 04:54:39,280 AND OUTCOMES. THREE FOCUS AREAS 7443 04:54:39,280 --> 04:54:40,360 CARDIOVASCULAR DISEASE, 7444 04:54:40,360 --> 04:54:42,760 INFECTION AND IMMUNITY, AND 7445 04:54:42,760 --> 04:54:44,720 MENTAL HEALTH AS WELL AS 7446 04:54:44,720 --> 04:54:46,480 OVERARCHING THEME OF ADDRESSING 7447 04:54:46,480 --> 04:54:47,800 DISPARITIES BY RACE ETHNICITY 7448 04:54:47,800 --> 04:54:50,200 AGE AND GEOGRAPHIC REGION. ALL 7449 04:54:50,200 --> 04:54:51,600 HIGHLIGHT THE SUBSTANCE ABUSE 7450 04:54:51,600 --> 04:54:54,200 DURING PREGNANCY INCLUDING 7451 04:54:54,200 --> 04:54:56,200 ALCOHOL USE FALLS SQUARELY 7452 04:54:56,200 --> 04:55:02,560 WITHIN IMPROVE AREAS OF FOCUS. 7453 04:55:02,560 --> 04:55:05,120 NEXT I WOULD LIKE TO DISCUSS 7454 04:55:05,120 --> 04:55:06,640 NICHD EFFORTS AROUND ABLEISM AND 7455 04:55:06,640 --> 04:55:13,960 DISABILITY INCLUSION. ABLEISM IS 7456 04:55:13,960 --> 04:55:15,880 THE ASSUMPTION THAT PERSONS WITH 7457 04:55:15,880 --> 04:55:17,960 DISABILITIES ARE INFERIOR OR 7458 04:55:17,960 --> 04:55:19,640 INADEQUATE. LEADING TO 7459 04:55:19,640 --> 04:55:20,640 DISCRIMINATION AND SOCIAL 7460 04:55:20,640 --> 04:55:24,000 PREJUDICE. UNFORTUNATELY 7461 04:55:24,000 --> 04:55:25,000 ABLEISM OFTEN RESULTS IN PERSONS 7462 04:55:25,000 --> 04:55:26,680 WITH DISABILITIES BEING DENIED 7463 04:55:26,680 --> 04:55:28,240 ACCESS TO MEDICAL CARE, 7464 04:55:28,240 --> 04:55:30,080 RECEIVING LOWER QUALITY CARE, 7465 04:55:30,080 --> 04:55:31,880 AND BEING DENIED THE OPPORTUNITY 7466 04:55:31,880 --> 04:55:34,320 TO PARTICIPATE IN RESEARCH THAT 7467 04:55:34,320 --> 04:55:35,640 COULD ULTIMATELY IMPROVE THEIR 7468 04:55:35,640 --> 04:55:36,560 LIVES AND THE LIVES OF MANY 7469 04:55:36,560 --> 04:55:40,160 OTHERS. SOME ARGUMENTS HAVE BEEN 7470 04:55:40,160 --> 04:55:42,080 USED TO JUSTIFY DENYING DISABLED 7471 04:55:42,080 --> 04:55:43,840 PERSONS ACCESS TO RESEARCH OR 7472 04:55:43,840 --> 04:55:45,880 CLINICAL CARE ARE LISTED HERE. 7473 04:55:45,880 --> 04:55:47,200 CLINICAL PROVIDERS AND 7474 04:55:47,200 --> 04:55:48,760 RESEARCHERS MAY ASSUME IT IS NOT 7475 04:55:48,760 --> 04:55:50,320 SAFE FOR A PERSON WITH 7476 04:55:50,320 --> 04:55:51,800 DISABILITY TO UNDERGO PROCEDURE 7477 04:55:51,800 --> 04:55:53,840 OR TO PARTICIPATE IN A RESEARCH 7478 04:55:53,840 --> 04:55:55,480 STUDY WITHOUT ANY SUPPORTING 7479 04:55:55,480 --> 04:55:57,760 EVIDENCE. TRADITIONAL MEDICAL 7480 04:55:57,760 --> 04:56:00,000 MODELS SEE DISABLES AS ILLNESSES 7481 04:56:00,000 --> 04:56:02,720 OR DEFICITS THAT ARE INHERENT TO 7482 04:56:02,720 --> 04:56:04,600 THE PERSON AND THUS MAY NOT 7483 04:56:04,600 --> 04:56:05,920 RECOGNIZE ENVIRONMENTAL OR 7484 04:56:05,920 --> 04:56:07,960 STRUCTURAL BARRIERS THAT PREVENT 7485 04:56:07,960 --> 04:56:09,800 DISABLED PERSONS FROM ACCESSING 7486 04:56:09,800 --> 04:56:10,680 CLINICAL CARE OR RESEARCH 7487 04:56:10,680 --> 04:56:13,000 OPPORTUNITIES. HEALTHCARE 7488 04:56:13,000 --> 04:56:15,320 RESEARCH FACILITIES MAY ASSUME 7489 04:56:15,320 --> 04:56:16,880 THAT IT IS TOO DIFFICULT AND 7490 04:56:16,880 --> 04:56:17,880 EXPENSIVE TO MAKE EVERYTHING 7491 04:56:17,880 --> 04:56:22,160 ACCESSIBLE. RESEARCHERS MAY 7492 04:56:22,160 --> 04:56:23,960 EXCLUDE DISABLED PERSON RESEARCH 7493 04:56:23,960 --> 04:56:26,080 BECAUSE THEY THINK IT WILL ADD 7494 04:56:26,080 --> 04:56:27,960 VARIABILITY OR HETEROGENEITY TO 7495 04:56:27,960 --> 04:56:30,760 THE DATA THEY COLLECT. MAKING 7496 04:56:30,760 --> 04:56:34,840 THEIR DATA MESSY. TO ADDRESS 7497 04:56:34,840 --> 04:56:36,320 THIS ISSUE THE NATIONAL 7498 04:56:36,320 --> 04:56:38,240 INSTITUTE OF MEDICAL 7499 04:56:38,240 --> 04:56:39,840 REHABILITATION RESEARCH WHICH IS 7500 04:56:39,840 --> 04:56:41,800 PART OF NICHD, IS HOSTING A TWO 7501 04:56:41,800 --> 04:56:44,240 DAY WORKSHOP LATER THIS MONTH ON 7502 04:56:44,240 --> 04:56:45,680 ABLEISM IN MEDICINE AND CLINICAL 7503 04:56:45,680 --> 04:56:48,480 RESEARCH. THE GOAL OF THIS 7504 04:56:48,480 --> 04:56:50,720 WORKSHOP IS TO HIGHLIGHT 7505 04:56:50,720 --> 04:56:51,760 OPPORTUNITIES TO MITIGATE THE 7506 04:56:51,760 --> 04:56:53,680 IMPACT OF ABLEISM IN CLINICAL 7507 04:56:53,680 --> 04:56:56,000 CARE RESEARCH. THE EASIEST WAY 7508 04:56:56,000 --> 04:56:57,040 TO FIND REGISTRATION LINK FOR 7509 04:56:57,040 --> 04:56:59,280 THE WORKSHOP IS SIMPLY TO DO 7510 04:56:59,280 --> 04:57:01,480 INTERNET SEARCH FOR NIH ABLEISM 7511 04:57:01,480 --> 04:57:03,160 WORKSHOP AND FOLLOW THE LINKS TO 7512 04:57:03,160 --> 04:57:07,280 REGISTRATION PAGE. THANK YOU FOR 7513 04:57:07,280 --> 04:57:09,480 THIS OPPORTUNITY TO SHARE 7514 04:57:09,480 --> 04:57:10,640 INFORMATION ABOUT NICHD. I LOOK 7515 04:57:10,640 --> 04:57:11,360 FORWARD TO THE COMING 7516 04:57:11,360 --> 04:57:21,600 DISCUSSION. 7517 04:57:26,320 --> 04:57:28,800 >> HELLO. I'M CHRIS SARAMPOTE 7518 04:57:28,800 --> 04:57:31,520 CHIEF OF BIOMARKER INTERVENTION 7519 04:57:31,520 --> 04:57:33,560 DEVELOPMENT CHILDHOOD DISORDERS 7520 04:57:33,560 --> 04:57:34,560 BRANCH DIVISION OF TRANSLATIONAL 7521 04:57:34,560 --> 04:57:35,600 RESEARCH AT THE NATIONAL 7522 04:57:35,600 --> 04:57:37,720 INSTITUTE OF MENTAL HEALTH. I AM 7523 04:57:37,720 --> 04:57:40,080 ONE OF TWO REPRESENTATIVES FOR 7524 04:57:40,080 --> 04:57:42,400 NIMH ON THE ICCFASD. THE OTHER 7525 04:57:42,400 --> 04:57:46,840 IS JULIA ZEHR CHIEF 7526 04:57:46,840 --> 04:57:47,720 DEVELOPMENTAL MECHANISMS AND 7527 04:57:47,720 --> 04:57:49,160 PSYCHOPATHOLOGY BRANCH WITHIN 7528 04:57:49,160 --> 04:57:50,040 THE DIVISION OF TRANSLATIONAL 7529 04:57:50,040 --> 04:57:54,640 RESEARCH. WE ARE GRATEFUL FOR 7530 04:57:54,640 --> 04:57:57,480 THE OPPORTUNITY TO REPRESENT 7531 04:57:57,480 --> 04:58:00,200 NIMH ON ENTERAGENCY COORDINATING 7532 04:58:00,200 --> 04:58:01,640 COMMITTEE ON FETAL ALCOHOL 7533 04:58:01,640 --> 04:58:04,320 SPECTRUM DISORDERS. NIMH IS LEAD 7534 04:58:04,320 --> 04:58:06,240 FEDERAL AGENCY FOR RESEARCH ON 7535 04:58:06,240 --> 04:58:07,360 MENTAL DISORDERS AN SUPPORTS 7536 04:58:07,360 --> 04:58:09,000 RESEARCH THAT SPANS THE ENTIRE 7537 04:58:09,000 --> 04:58:10,360 PIPELINE MENTAL HEALTH RESEARCH 7538 04:58:10,360 --> 04:58:11,960 FROM BASIC STUDIES OF MECHANISMS 7539 04:58:11,960 --> 04:58:15,040 OF UNDERLYING COMPLEX EMOTION 7540 04:58:15,040 --> 04:58:16,280 AND BEHAVIOR, STUDIES OF 7541 04:58:16,280 --> 04:58:18,000 TRAJECTORIES OF MENTAL ILLNESS 7542 04:58:18,000 --> 04:58:19,320 FROM CHILDHOOD TO YOUNG AND 7543 04:58:19,320 --> 04:58:21,520 OLDER ADULTS. STUDIES THAT 7544 04:58:21,520 --> 04:58:22,960 DEVELOP NEW INTERVENTIONS, 7545 04:58:22,960 --> 04:58:25,000 PREVENTATIVE INTERVENTIONS, AND 7546 04:58:25,000 --> 04:58:26,680 STUDIES THAT IMPACT THE 7547 04:58:26,680 --> 04:58:28,680 INTERVENTIONS AND SERVICES THAT 7548 04:58:28,680 --> 04:58:30,320 EXIST ON ALLEVIATING THE BURDEN 7549 04:58:30,320 --> 04:58:35,320 OF MENTAL ILLNESS. NIMH IS 7550 04:58:35,320 --> 04:58:37,080 COMMITTED TO DEVELOPING 7551 04:58:37,080 --> 04:58:37,760 INNOVATIVE SERVICE DELIVERY 7552 04:58:37,760 --> 04:58:40,080 MODELS TO DRAMATICALLY IMPROVE 7553 04:58:40,080 --> 04:58:41,400 OUTCOME OF MENTAL HEALTH 7554 04:58:41,400 --> 04:58:42,160 SERVICES RECEIVED FIRST COMMUNE 7555 04:58:42,160 --> 04:58:45,640 AT THIS AN POPULATIONS, THE 7556 04:58:45,640 --> 04:58:46,760 TREATMENT OF MEN TAILNESS IS 7557 04:58:46,760 --> 04:58:48,280 CORE MISSION OF NIH AND THE NEED 7558 04:58:48,280 --> 04:58:49,280 FOR EFFECTIVE MENTAL HEALTHCARE 7559 04:58:49,280 --> 04:58:51,800 WHEN CRITICAL. THESE CHALLENGES 7560 04:58:51,800 --> 04:58:53,200 ARE EXACERBATED BY NUMEROUS 7561 04:58:53,200 --> 04:58:55,640 FACTORS INCLUDING PANDEMIC, AND 7562 04:58:55,640 --> 04:58:57,280 DISPARITIES IN MENTAL HEALTHCARE 7563 04:58:57,280 --> 04:58:59,280 AND SOME GROUPS INCLUDING 7564 04:58:59,280 --> 04:59:00,240 INDIVIDUALS WITH FASD ARE 7565 04:59:00,240 --> 04:59:03,600 PARTICULARLY IMPACTED BY MENTAL 7566 04:59:03,600 --> 04:59:05,400 ILLNESS. INDIVIDUALS WITH FASD 7567 04:59:05,400 --> 04:59:06,600 ARE INCREASE RISK FOR 7568 04:59:06,600 --> 04:59:09,920 PSYCHOLOGICAL DISORDERS SUCH AS 7569 04:59:09,920 --> 04:59:11,520 ADHD, ARE PRESCRIBED PSYCH 7570 04:59:11,520 --> 04:59:13,400 TROPIC MEDICATIONS AT HIGHER 7571 04:59:13,400 --> 04:59:14,560 RATES THAN THOSE WITHOUT AND 7572 04:59:14,560 --> 04:59:15,960 INCREASE RISK FOR SUICIDAL 7573 04:59:15,960 --> 04:59:20,480 BEHAVIOR. IN ADDITION TO MORE 7574 04:59:20,480 --> 04:59:21,920 GENERALLY PRE-NATAL ALCOHOL 7575 04:59:21,920 --> 04:59:24,400 EXPOSURE IS ASSOCIATED WITH IN 7576 04:59:24,400 --> 04:59:25,880 CHILDREN, PSYCHIATRIC SYMPTOMS 7577 04:59:25,880 --> 04:59:27,640 ARE ASSOCIATED WITH PRE-NATAL 7578 04:59:27,640 --> 04:59:31,000 ALCOHOL ABUSE, INCLUDING EMOTION 7579 04:59:31,000 --> 04:59:32,440 DISREGULATION, PULSESIVETY, 7580 04:59:32,440 --> 04:59:33,400 IMPAIRED FUNCTION AND RESPOND 7581 04:59:33,400 --> 04:59:34,880 DIFFERENTLY TO STANDARD 7582 04:59:34,880 --> 04:59:36,320 PSYCHIATRIC TREATMENTS. 7583 04:59:36,320 --> 04:59:37,240 UNDERSTANDING THE THESE 7584 04:59:37,240 --> 04:59:39,000 RELATIONSHIPS BETWEEN ALCOHOL 7585 04:59:39,000 --> 04:59:40,440 EXPOSURE BEHAVIOR PSYCHIATRIC 7586 04:59:40,440 --> 04:59:42,960 SYMPTOMS AND OTHER VARIABLES 7587 04:59:42,960 --> 04:59:44,640 LIKE ENVIRONMENT CAN BETTER 7588 04:59:44,640 --> 04:59:47,080 UNDERSTAND DEVELOPMENT OF 7589 04:59:47,080 --> 04:59:48,720 TRAJECTORIES FOR CHILDREN WITH 7590 04:59:48,720 --> 04:59:50,600 AND DETERMINE HOW AND WHEN TO 7591 04:59:50,600 --> 04:59:51,760 BETTER INTERVENE. IN ADDITION 7592 04:59:51,760 --> 04:59:53,560 MORE WORK IS NEEDED TO BETTER 7593 04:59:53,560 --> 04:59:54,680 UNDERSTAND HOW EXISTING MENTAL 7594 04:59:54,680 --> 04:59:57,440 HEALTH SERVICES ARE UTILIZED BY 7595 04:59:57,440 --> 05:00:00,200 AND BENEFIT -- BY AND BENEFIT 7596 05:00:00,200 --> 05:00:02,760 PEOPLE WITH FASD. PUBLIC 7597 05:00:02,760 --> 05:00:06,680 PARTNERS AT ICCFASD MADE IT 7598 05:00:06,680 --> 05:00:08,520 CLEAR TRAINING FASD AND NEEDS 7599 05:00:08,520 --> 05:00:12,840 CHANGE SIGNIFICANTLY OVER LIFE 7600 05:00:12,840 --> 05:00:18,240 SPAN. CURRENTLY NIMH DOES NOT 7601 05:00:18,240 --> 05:00:20,160 FUND GRANTS FOCUSED ON FASD AND 7602 05:00:20,160 --> 05:00:21,960 MENTAL ILLNESS BUT PARTNERS WITH 7603 05:00:21,960 --> 05:00:23,520 SISTER NIH INSTITUTES PROVIDE 7604 05:00:23,520 --> 05:00:25,080 SCIENTIFIC EXPERTISE AND 7605 05:00:25,080 --> 05:00:25,840 IDENTIFY NEW OPPORTUNITIES FOR 7606 05:00:25,840 --> 05:00:28,920 COLLABORATION. THIS INCLUDES 7607 05:00:28,920 --> 05:00:30,640 ICCFASD, AS WELL AS EFFORTS LIKE 7608 05:00:30,640 --> 05:00:32,880 THE NIH HEALTHY BRAIN COGNITIVE 7609 05:00:32,880 --> 05:00:36,760 DEVELOPMENT STUDY WE EXAMINE 7610 05:00:36,760 --> 05:00:37,920 DEVELOPMENTAL TRAJECTORIES FOR 7611 05:00:37,920 --> 05:00:39,400 PERINATAL CHILDHOOD. WITH THIS 7612 05:00:39,400 --> 05:00:41,600 COHORT SECONDARY ANALYSES CAN BE 7613 05:00:41,600 --> 05:00:43,920 DECONDUCTED TO EXAMINE HOW FAS 7614 05:00:43,920 --> 05:00:45,080 IS INVOLVED IN RISK AND 7615 05:00:45,080 --> 05:00:46,760 RESILIENCE AND HOW TO MITIGATE 7616 05:00:46,760 --> 05:00:52,320 AND PROMOTE EACH. THE OVERVIEW 7617 05:00:52,320 --> 05:00:55,640 AND BEHALF OF JULIA AND MYSELF 7618 05:00:55,640 --> 05:00:56,400 THANKS FOR THE OPPORTUNITY TO 7619 05:00:56,400 --> 05:00:57,320 CONTRIBUTE TO ICCFASD AND TO 7620 05:00:57,320 --> 05:01:02,600 LEARN MORE. THANK YOU. 7621 05:01:02,600 --> 05:01:10,400 >> 7622 05:01:10,400 --> 05:01:13,600 >> HI, MY NAME IS KAISER 7623 05:01:13,600 --> 05:01:15,400 HIGHSMITH FROM THE NATIONAL 7624 05:01:15,400 --> 05:01:16,880 INSTITUTE ON DRUG ABUSE, HEALTH 7625 05:01:16,880 --> 05:01:18,240 SCIENCE ADMINISTRATOR IN THE 7626 05:01:18,240 --> 05:01:19,560 DIVISION OF EPIDEMIOLOGY, 7627 05:01:19,560 --> 05:01:23,400 SERVICES, PREVENTION RESEARCH. 7628 05:01:23,400 --> 05:01:25,920 MY COLLEAGUE JANANI IS ALSO NIDA 7629 05:01:25,920 --> 05:01:26,840 DIVISION OF NEUROSCIENCE 7630 05:01:26,840 --> 05:01:30,120 BEHAVIOR AND WE BOTH SERVE ON 7631 05:01:30,120 --> 05:01:32,320 THE ICCFASD WORK GROUP. 7632 05:01:32,320 --> 05:01:33,560 UNFORTUNATELY WE ARE BOTH NOT 7633 05:01:33,560 --> 05:01:36,760 ABLE TO JOIN YOU TODAY BUT WE 7634 05:01:36,760 --> 05:01:38,000 APPRECIATE THE OPPORTUNITY TO 7635 05:01:38,000 --> 05:01:43,080 PROVIDE NIDA UPDATES. SO TODAY 7636 05:01:43,080 --> 05:01:45,840 I WILL BE PROVIDING OVERVIEW OF 7637 05:01:45,840 --> 05:01:47,560 WHAT UPDATES ON THE NIDA 7638 05:01:47,560 --> 05:01:49,520 SUBSTANCE USE DISORDER AND 7639 05:01:49,520 --> 05:01:52,160 INFANT OUTCOME RESEARCH 7640 05:01:52,160 --> 05:01:54,560 PORTFOLIO. NIDA IS WOMEN AND SEX 7641 05:01:54,560 --> 05:01:56,680 GENDER DIFFERENCES RESEARCH WORK 7642 05:01:56,680 --> 05:01:58,160 GROUP. AND THEN PROVIDE OVERVIEW 7643 05:01:58,160 --> 05:02:00,840 OF NIDA SPONSORED WORKSHOPS THAT 7644 05:02:00,840 --> 05:02:02,760 WE RECENTLY HAD AS WELL AS 7645 05:02:02,760 --> 05:02:04,720 CURRENT ONE THAT WE ARE -- AND 7646 05:02:04,720 --> 05:02:07,000 UPDATE ON OUR HEALTHY BRAIN AND 7647 05:02:07,000 --> 05:02:09,400 CHILD DEVELOPMENT STUDY OR HDCD 7648 05:02:09,400 --> 05:02:13,920 STUDY. SO OUR SUBSTANCE USE 7649 05:02:13,920 --> 05:02:15,920 DISORDER AND INFANT OUTCOME 7650 05:02:15,920 --> 05:02:16,960 RESEARCH PORTFOLIO. DURING THE 7651 05:02:16,960 --> 05:02:20,680 FISCAL YEAR 2019 THROUGH 2023, 7652 05:02:20,680 --> 05:02:23,720 NIDA HAD A WARNED APPROXIMATELY 7653 05:02:23,720 --> 05:02:25,400 $119 MILLION ACROSS 217 GRANTS 7654 05:02:25,400 --> 05:02:27,360 TO SUPPORT RESEARCH FOCUSED ON 7655 05:02:27,360 --> 05:02:29,480 SUBSTANCE USE DISORDER AND 7656 05:02:29,480 --> 05:02:30,880 PERINATAL OUTCOMES. 7657 05:02:30,880 --> 05:02:33,080 APPROXIMATELY 23% OF FUNDING 7658 05:02:33,080 --> 05:02:34,280 APPLICATIONS WERE RO1s 7659 05:02:34,280 --> 05:02:38,480 FOLLOWED BY R21 AND R34 AWARDS. 7660 05:02:38,480 --> 05:02:40,360 THE SPIKE IN FUNDING IN 2019 THAT 7661 05:02:40,360 --> 05:02:42,200 IS REFLECTED ON THE BAR GRAPH IN 7662 05:02:42,200 --> 05:02:44,240 THE TOP RIGHT CORNER OF THE 7663 05:02:44,240 --> 05:02:47,320 SLIDE, IS REFLECTIVE OF THE 7664 05:02:47,320 --> 05:02:48,840 SIGNIFICANT FUNDING TO SUPPORT 7665 05:02:48,840 --> 05:02:49,920 HEALTHY BRAIN AND CHILD 7666 05:02:49,920 --> 05:02:54,880 DEVELOPMENT STUDY OR HBCD. THE 7667 05:02:54,880 --> 05:02:56,960 BAR GRAPH FAR RIGHT YOU SEE A 7668 05:02:56,960 --> 05:03:00,880 SHORT OR SMALLER BAR 7669 05:03:00,880 --> 05:03:02,920 REPRESENTING 2023. WE ARE STILL 7670 05:03:02,920 --> 05:03:03,680 EARLY IN THE EARLY PART OF 7671 05:03:03,680 --> 05:03:05,800 PHYSICAL YEAR 2023 SO THIS PART 7672 05:03:05,800 --> 05:03:09,280 ALSO EXPECTED TO INCREASE. THE 7673 05:03:09,280 --> 05:03:10,360 WORD CLOUD REFLECTS PRIMARY 7674 05:03:10,360 --> 05:03:13,480 RESEARCH TOPICS APPLICATIONS 7675 05:03:13,480 --> 05:03:20,920 FOCUSED ON NEONATAL SYNDROME 7676 05:03:20,920 --> 05:03:23,040 WHERE THOSE PRIMARY TOPICS SO AS I 7677 05:03:23,040 --> 05:03:24,440 MENTIONED NIDA HAS A WOMEN AND 7678 05:03:24,440 --> 05:03:26,240 SEX GENDER DIFFERENCES RESEARCH 7679 05:03:26,240 --> 05:03:28,840 WORK GROUP THAT I CO-CHAIR WITH 7680 05:03:28,840 --> 05:03:29,800 MY COLLEAGUE DR. (INAUDIBLE) THE 7681 05:03:29,800 --> 05:03:31,680 MISSION OF THIS WORK IS TWOFOLD. 7682 05:03:31,680 --> 05:03:33,920 IS TO PROMOTE CAREERS IN WOMEN'S 7683 05:03:33,920 --> 05:03:35,800 SCIENTISTS, AND PROMOTE THE 7684 05:03:35,800 --> 05:03:37,160 CONDUCT TRANSLATION AND 7685 05:03:37,160 --> 05:03:39,040 DISSEMINATION OF RESEARCH ON SEX 7686 05:03:39,040 --> 05:03:41,080 GENDER DIFFERENCES IN THE 7687 05:03:41,080 --> 05:03:42,600 PHARMACOLOGY AND SOCIOECONOMIC 7688 05:03:42,600 --> 05:03:44,160 DETERMINANTS OF SUBSTANCE USE 7689 05:03:44,160 --> 05:03:45,280 DISORDERS AND RESPOND TO 7690 05:03:45,280 --> 05:03:46,720 SUBSTANCES OF ABUSE. WE ALSO 7691 05:03:46,720 --> 05:03:48,160 LOOK TO SUPPORT RESEARCH THAT 7692 05:03:48,160 --> 05:03:49,720 LOOK AT THE INTERACTIONS OF SID 7693 05:03:49,720 --> 05:03:53,800 RISK FACTORS SUBSTANCE USE 7694 05:03:53,800 --> 05:03:55,440 DISORDER AND CHANGES IN FEMALE 7695 05:03:55,440 --> 05:03:57,040 PHYSIOLOGY AN BEHAVIOR ACROSS 7696 05:03:57,040 --> 05:03:59,240 THE LIFE SPAN. WE DO SUPPORT 7697 05:03:59,240 --> 05:04:00,480 RESEARCH THAT ALSO LOOK AT 7698 05:04:00,480 --> 05:04:01,880 HEALTH SERVICES THAT MAXIMIZES 7699 05:04:01,880 --> 05:04:03,880 THE EFFICIENT DELIVERY OF HIGH 7700 05:04:03,880 --> 05:04:05,080 QUALITY PERSONALIZED ADDICTION 7701 05:04:05,080 --> 05:04:06,320 TREATMENT AND RELATED SERVICES 7702 05:04:06,320 --> 05:04:10,000 TO WOMEN ACROSS THE LIFE SPAN. 7703 05:04:10,000 --> 05:04:11,920 THE WORK GROUP HAS THREE PRIMARY 7704 05:04:11,920 --> 05:04:15,160 FOCUS AREAS FOR RESEARCH. ONE 7705 05:04:15,160 --> 05:04:16,640 WOMEN'S AND MATERNAL HEALTH 7706 05:04:16,640 --> 05:04:18,120 RESEARCH SEX GENDER DIFFERENCES 7707 05:04:18,120 --> 05:04:21,400 RESEARCH AND ALSO RESEARCH THAT 7708 05:04:21,400 --> 05:04:23,600 RESEARCH FROM EARLY CAREER 7709 05:04:23,600 --> 05:04:24,760 INVESTIGATORS TO SUPPORT THEIR 7710 05:04:24,760 --> 05:04:26,000 CAREER DEVELOPMENT TRAINING FOR 7711 05:04:26,000 --> 05:04:29,880 WOMEN SCIENTISTS. I INCLUDE A 7712 05:04:29,880 --> 05:04:31,320 QR CODE AT THE BOTTOM OF THE 7713 05:04:31,320 --> 05:04:33,320 SLIDE, IF YOU WOULD LIKE TO GET 7714 05:04:33,320 --> 05:04:33,920 MORE INFORMATION ON THE WORK 7715 05:04:33,920 --> 05:04:40,760 GROUP. NIDA HAVE TWO BRAIN 7716 05:04:40,760 --> 05:04:42,960 DEVELOPMENT RESEARCH CONSORTIUM 7717 05:04:42,960 --> 05:04:45,400 WORKSHOPS ONE FOCUSED ON IMPACT 7718 05:04:45,400 --> 05:04:47,400 OF CO-MORBID COVID. THIS WAS 7719 05:04:47,400 --> 05:04:50,960 HELD IN JULY OF 2022, THE 7720 05:04:50,960 --> 05:04:52,320 CONSORTIUM CONVENE RESEARCHERS 7721 05:04:52,320 --> 05:04:54,560 AN CLINICS WITH EXPERTISE IN 7722 05:04:54,560 --> 05:04:56,560 SUBSTANCE USE DISORDER AMONG 7723 05:04:56,560 --> 05:04:58,800 PREGNANT WOMEN FETAL DEVELOPMENT 7724 05:04:58,800 --> 05:05:00,080 NEONATOLOGY, MATERNAL HEALTH AND 7725 05:05:00,080 --> 05:05:02,000 PEDIATRICS. THE WORKSHOP AIM TO 7726 05:05:02,000 --> 05:05:03,520 REVIEW THE STATE OF THE SCIENCE 7727 05:05:03,520 --> 05:05:06,000 IN COVID-19 AND SUBSTANCE USE 7728 05:05:06,000 --> 05:05:07,120 DURING PREGNANCY AN EFFECT ON 7729 05:05:07,120 --> 05:05:09,680 THE FETAL AND INFANT DEVELOPMENT 7730 05:05:09,680 --> 05:05:11,080 WITH ATTENTION TO RESEARCH GAPS 7731 05:05:11,080 --> 05:05:14,680 AND OPPORTUNITY. THE KEYNOTE 7732 05:05:14,680 --> 05:05:17,000 ADDRESS AROUND INTERACTIONS THAT 7733 05:05:17,000 --> 05:05:18,400 INFLUENCE BRAIN DEVELOPMENT AND 7734 05:05:18,400 --> 05:05:21,160 SET THE STAGE FOR FOUR 7735 05:05:21,160 --> 05:05:22,840 SUBSEQUENT PRESENTATIONS AND 7736 05:05:22,840 --> 05:05:24,320 PRESENTATIONS. PRESENTERS AND 7737 05:05:24,320 --> 05:05:26,200 PANELISTS DISCUSS COVID-19 7738 05:05:26,200 --> 05:05:27,640 INFECTION WITH ATTENTION TO 7739 05:05:27,640 --> 05:05:29,760 VARIANTS ON DEVELOPING FETUS, 7740 05:05:29,760 --> 05:05:31,200 PANDEMIC STRESS ON MATERNAL 7741 05:05:31,200 --> 05:05:33,520 HEALTH, AND CO-MORBID COVID 7742 05:05:33,520 --> 05:05:35,200 INFECTION AND/OR PANDEMIC STRESS 7743 05:05:35,200 --> 05:05:36,840 AND SUBSTANCE USE OF FETAL 7744 05:05:36,840 --> 05:05:38,840 OUTCOMES IN NEURAL DEVELOPMENT. 7745 05:05:38,840 --> 05:05:40,240 PRESENTERS ALSO DISCUSSED 7746 05:05:40,240 --> 05:05:42,080 INNOVATIONS AND REMOTE DATA 7747 05:05:42,080 --> 05:05:43,320 COLLECTION AND TELEHEALTH BORN 7748 05:05:43,320 --> 05:05:46,440 OUT OF THE PANDEMIC. THE SECOND 7749 05:05:46,440 --> 05:05:48,320 WORKSHOP FOCUS ON PLACENTAL 7750 05:05:48,320 --> 05:05:50,000 FUNCTION AND ADDICTIVE 7751 05:05:50,000 --> 05:05:52,240 SUBSTANCES. THIS WORKSHOP WAS 7752 05:05:52,240 --> 05:05:54,680 TIMELY GIVEN CRISIS AND MATERNAL 7753 05:05:54,680 --> 05:05:55,960 MORTALITY AND EVIDENCE THAT DRUG 7754 05:05:55,960 --> 05:05:58,120 OVERDOSE IS A LEADING CAUSE OF 7755 05:05:58,120 --> 05:06:00,120 PREGNANCY RELATED DEATH. THIS 7756 05:06:00,120 --> 05:06:01,680 WORKSHOP COVERED CLINICAL 7757 05:06:01,680 --> 05:06:02,880 RESEARCH BASIC RESEARCH AND 7758 05:06:02,880 --> 05:06:07,600 ANIMAL MODELS, GENETICS AND 7759 05:06:07,600 --> 05:06:08,280 EPIEPIGENETICS AND EMERGING 7760 05:06:08,280 --> 05:06:13,120 TECHNOLOGIES. IT INSPIRED THE 7761 05:06:13,120 --> 05:06:14,600 DEVELOPMENT OF HELP IN ADDICTION 7762 05:06:14,600 --> 05:06:16,360 LONG TERM FUNDING OPPORTUNITY 7763 05:06:16,360 --> 05:06:17,120 ANNOUNCEMENTS THAT WERE 7764 05:06:17,120 --> 05:06:20,520 GENERATED IN COLLABORATION WITH 7765 05:06:20,520 --> 05:06:23,520 OUR SISTER IC, THE NICHD. THESE 7766 05:06:23,520 --> 05:06:24,680 FUNDING OPPORTUNITY 7767 05:06:24,680 --> 05:06:25,720 ANNOUNCEMENTS AIM TO SUPPORT 7768 05:06:25,720 --> 05:06:27,360 STUDIES THAT EXAMINE THE IMPACT 7769 05:06:27,360 --> 05:06:29,760 OF OPIOIDS, ALONE OR IN 7770 05:06:29,760 --> 05:06:31,240 COMBINATION, WITH OTHER 7771 05:06:31,240 --> 05:06:33,320 SUBSTANCES OF MISUSE. ON 7772 05:06:33,320 --> 05:06:34,440 PLACENTA FUNCTION AND NEURAL 7773 05:06:34,440 --> 05:06:35,360 DEVELOPMENT DURING PREGNANCY AND 7774 05:06:35,360 --> 05:06:44,440 IN THE FIRST YEAR OF LIFE. THE 7775 05:06:44,440 --> 05:06:45,880 ENGAGING CHILD WELFARE SYSTEMS 7776 05:06:45,880 --> 05:06:47,880 AND YOUNG CHILDREN WORKSHOP IS A 7777 05:06:47,880 --> 05:06:49,880 WORKSHOP THAT WE ARE CURRENTLY 7778 05:06:49,880 --> 05:06:52,560 PLANNING, IT WILL BE A DAY AND A 7779 05:06:52,560 --> 05:06:54,880 HALF, HYBRID WORKSHOP THAT IS 7780 05:06:54,880 --> 05:06:57,240 SCHEDULED TO TAKE PLACE MAY 25 7781 05:06:57,240 --> 05:06:58,560 THROUGH 26, IN BETHESDA, 7782 05:06:58,560 --> 05:06:59,920 MARYLAND. THIS WORKSHOP IS 7783 05:06:59,920 --> 05:07:01,800 DESIGNED TO PROMOTE 7784 05:07:01,800 --> 05:07:03,360 COLLABORATION BETWEEN CHILD AND 7785 05:07:03,360 --> 05:07:05,360 FAMILY DEVELOPMENT RESEARCHERS 7786 05:07:05,360 --> 05:07:06,920 AND THE CHILD WELFARE SERVICE 7787 05:07:06,920 --> 05:07:10,880 DELIVERY SYSTEM. INVITED SPEAKER 7788 05:07:10,880 --> 05:07:13,240 THE CHILD WELFARE POLICY 7789 05:07:13,240 --> 05:07:14,440 PRACTICE RESEARCH COMMUNITIES 7790 05:07:14,440 --> 05:07:16,800 AND RELEVANT SCHOLARS WILL 7791 05:07:16,800 --> 05:07:17,920 DELIVER SEVERAL PRESENTATIONS TO 7792 05:07:17,920 --> 05:07:20,240 AN AUDIENCE OF CHILD AND FAMILY 7793 05:07:20,240 --> 05:07:21,800 RESEARCHERS FROM NIH, AS WELL AS 7794 05:07:21,800 --> 05:07:24,360 OTHER FEDERAL STATE AND 7795 05:07:24,360 --> 05:07:25,160 COMMUNITY ORGANIZATIONS. THE 7796 05:07:25,160 --> 05:07:27,400 PRESENTATIONS WILL PROVIDE AN 7797 05:07:27,400 --> 05:07:29,080 OVERVIEW OF THE CHILD WELFARE 7798 05:07:29,080 --> 05:07:30,960 SYSTEM AND EXPLORATION OF 7799 05:07:30,960 --> 05:07:32,760 OVERLAP BETWEEN CHILD WELFARE 7800 05:07:32,760 --> 05:07:34,360 SUBSTANCE USE AND CRIMINAL 7801 05:07:34,360 --> 05:07:36,400 JUSTICE SYSTEMS, A SUMMARY OF 7802 05:07:36,400 --> 05:07:38,320 THE SCIENTIFIC EVIDENCE ON THE 7803 05:07:38,320 --> 05:07:39,760 SEQUELAE OF MALTREATMENT AND 7804 05:07:39,760 --> 05:07:41,400 FOSTER CARE ON BRAIN AND 7805 05:07:41,400 --> 05:07:42,400 BEHAVIORAL DEVELOPMENT OF 7806 05:07:42,400 --> 05:07:43,440 EFFECTED CHILDREN, ON THE 7807 05:07:43,440 --> 05:07:44,880 FUNCTIONING AND PROCESSES OF 7808 05:07:44,880 --> 05:07:47,680 FAMILIES INVOLVED WITH THE CHILD 7809 05:07:47,680 --> 05:07:49,040 WELFARE SYSTEM AND ON THE 7810 05:07:49,040 --> 05:07:49,800 IMPACT OF CHILD WELFARE 7811 05:07:49,800 --> 05:07:51,040 SERVICES ON INVOLVED CHILDREN 7812 05:07:51,040 --> 05:07:53,920 AND FAMILIES. WE WILL ALSO 7813 05:07:53,920 --> 05:07:57,760 EXPLORE OR EXAMINE THE RACIAL 7814 05:07:57,760 --> 05:08:01,000 ETHNIC DISPARITIES AND SES IN 7815 05:08:01,000 --> 05:08:02,920 OTHER DISPARITIES IN THE CHILD 7816 05:08:02,920 --> 05:08:06,480 WELFARE SYSTEM. FINALLY A DISCUSSION 7817 05:08:06,480 --> 05:08:10,000 ON INTEGRATING CHILD FAMILY 7818 05:08:10,000 --> 05:08:11,760 DEVELOPMENT DEVELOPMENT. THE 7819 05:08:11,760 --> 05:08:13,080 WORKSHOP ENDS WITH DELINEATION 7820 05:08:13,080 --> 05:08:14,400 OF STRATEGIES TO PROMOTE 7821 05:08:14,400 --> 05:08:15,560 COLLABORATION BETWEEN FEDERAL 7822 05:08:15,560 --> 05:08:17,240 STATE AND NON-PROFIT ENTITIES 7823 05:08:17,240 --> 05:08:19,160 REGARDING WORKING WITH CHILD 7824 05:08:19,160 --> 05:08:20,920 WELFARE SYSTEMS TO ENHANCE CHILD 7825 05:08:20,920 --> 05:08:22,400 FAMILY DEVELOPMENT RESEARCH. SO 7826 05:08:22,400 --> 05:08:24,200 PLEASE BE ON THE LOOK OUT FOR 7827 05:08:24,200 --> 05:08:25,120 MORE INFORMATION. THAT WILL BE 7828 05:08:25,120 --> 05:08:28,320 SENT OUT LATER THIS MONTH ON THE 7829 05:08:28,320 --> 05:08:32,840 NIH LIST SERVE. I KNOW DURING 7830 05:08:32,840 --> 05:08:36,080 PREVIOUS MEETING LAST YEAR OR 7831 05:08:36,080 --> 05:08:37,760 SO, WE PROVIDE A LITTLE 7832 05:08:37,760 --> 05:08:40,000 BACKGROUND AND UPDATE ON HBCD. 7833 05:08:40,000 --> 05:08:41,360 I'M JUST PROVIDING A LITTLE 7834 05:08:41,360 --> 05:08:43,520 BACKGROUND TODAY TO SET THE 7835 05:08:43,520 --> 05:08:44,640 STAGE FOR BRIEF UPDATE I WILL 7836 05:08:44,640 --> 05:08:46,160 PROVIDE ABOUT THE HEALTHY BRAIN 7837 05:08:46,160 --> 05:08:47,200 AND CHILD DEVELOPMENT STUDY AS 7838 05:08:47,200 --> 05:08:53,280 WELL. SO JUST A REFRESHER, 7839 05:08:53,280 --> 05:08:54,520 HEALTHY BRAIN CHILD DEVELOPMENT 7840 05:08:54,520 --> 05:08:56,240 STUDY IS A PROSPECTIVE 7841 05:08:56,240 --> 05:08:57,800 LONGITUDINAL STUDY BEGINNING 7842 05:08:57,800 --> 05:08:59,560 JUST BEFORE BIRTH. DURING THE 7843 05:08:59,560 --> 05:09:01,120 STURDY INVESTIGATORS CONDUCT 7844 05:09:01,120 --> 05:09:03,040 ASSESSMENTS ON PRENATAL EXPOSURE 7845 05:09:03,040 --> 05:09:05,800 AND ENVIRONMENT AND ALSO USE 7846 05:09:05,800 --> 05:09:07,800 MULTI-MODAL ASSESSMENTS OF BRAIN 7847 05:09:07,800 --> 05:09:09,320 COGNITIVE EMOTIONAL DEVELOPMENT 7848 05:09:09,320 --> 05:09:11,800 FROM BIRTH TO CHILDHOOD. THESE 7849 05:09:11,800 --> 05:09:14,200 ARE CHARACTERIZED 7850 05:09:14,200 --> 05:09:15,280 NEURODEVELOPMENTAL TRAJECTORIES 7851 05:09:15,280 --> 05:09:18,360 FROM LARGE SAMPLES TO DETERMINE 7852 05:09:18,360 --> 05:09:19,120 SUBSTANCE EXPOSURE AND OTHER 7853 05:09:19,120 --> 05:09:21,400 ENVIRONMENTAL FACTORS AFFECT 7854 05:09:21,400 --> 05:09:23,600 DEVELOPMENTAL TRAJECTORIES. THE 7855 05:09:23,600 --> 05:09:24,960 HBCD HAVE 25 SITES, ON THE 7856 05:09:24,960 --> 05:09:26,640 BOTTOM RIGHT CORNER YOU SEE A 7857 05:09:26,640 --> 05:09:28,320 MAP OF THE STATES WHERE THESE 7858 05:09:28,320 --> 05:09:31,200 SITES ARE LOCATED AND ON THE 7859 05:09:31,200 --> 05:09:34,680 BOTTOM LEFT CORNER, BOTTOM RIGHT 7860 05:09:34,680 --> 05:09:36,200 CORNER AND ON THE LEFT CORNER 7861 05:09:36,200 --> 05:09:37,880 THERE IS BLOCKS DIFFERENT COLOR 7862 05:09:37,880 --> 05:09:40,120 BLOCKS AN THOSE ARE REFLECTING 7863 05:09:40,120 --> 05:09:43,040 THE VARIOUS INSTITUTES WITHIN 7864 05:09:43,040 --> 05:09:45,160 NIH THAT ALSO SUPPORT AND FUND 7865 05:09:45,160 --> 05:09:50,760 HBCD. THIS PROVIDES A LITTLE 7866 05:09:50,760 --> 05:09:52,880 BACK GROWN OF HBCD SAMPLING 7867 05:09:52,880 --> 05:09:55,040 CHARACTERISTICS. WE SUGGESTED 7868 05:09:55,040 --> 05:09:58,720 SIX FACTORS CRITICAL TO ESTIMATE 7869 05:09:58,720 --> 05:10:00,920 REPRESENTATIVENESS OF U.S. WOMEN 7870 05:10:00,920 --> 05:10:02,760 15-49 YEARS GAVE BIRTH IN THE 7871 05:10:02,760 --> 05:10:04,280 LAST 12 MONTHS. WE ALSO CONSIDER 7872 05:10:04,280 --> 05:10:08,920 RACE ETHNICITY EDUCATION 7873 05:10:08,920 --> 05:10:10,200 URBANICITY INCOME AND 7874 05:10:10,200 --> 05:10:13,080 DECLARATION INDEX. THESE FACTOR 7875 05:10:13,080 --> 05:10:14,320 ASKS TO ACHIEVE 7876 05:10:14,320 --> 05:10:15,000 REPRESENTATIVENESS TO IMMEDIATE 7877 05:10:15,000 --> 05:10:18,200 TARGET POPULATION COMMUNITIES AT 7878 05:10:18,200 --> 05:10:20,040 HBCD SITES AND THE ULTIMATE 7879 05:10:20,040 --> 05:10:22,040 TARGET POPULATION WHICH IS U.S. 7880 05:10:22,040 --> 05:10:24,040 POPULATION OF PREGNANT PEOPLE. 7881 05:10:24,040 --> 05:10:26,560 THE PROJECT THE SAMPLE SIZE, 7882 05:10:26,560 --> 05:10:28,400 7500 PREGNANT PERSONS WHICH 7883 05:10:28,400 --> 05:10:31,320 COMPRISES OF 300 WOMEN, IN EACH 7884 05:10:31,320 --> 05:10:35,240 OF THE 25 SITES. SAMPLING GOALS 7885 05:10:35,240 --> 05:10:36,640 WAS TO RECRUIT A STUDY 7886 05:10:36,640 --> 05:10:38,280 POPULATION THAT REFLECTS 7887 05:10:38,280 --> 05:10:39,960 BIRTHING WOMEN AGE 15 TO 49 IN 7888 05:10:39,960 --> 05:10:45,680 THE U.S. 25% OF REPORT 7889 05:10:45,680 --> 05:10:46,760 BIOMARKERS INDICATIVE OF 7890 05:10:46,760 --> 05:10:48,200 SUBSTANCE USE DURING PREGNANCY. 7891 05:10:48,200 --> 05:10:50,400 AND TO RECRUIT WOMEN SO MUCH OF 7892 05:10:50,400 --> 05:10:51,520 THOSE USE SUBSTANCES DURING 7893 05:10:51,520 --> 05:10:53,400 PREGNANCY TO ENSURE REASONABLE 7894 05:10:53,400 --> 05:10:55,440 BALANCE OF POTENTIAL CONFOUNDERS 7895 05:10:55,440 --> 05:10:58,760 AND IMPROVE THE INTERNAL 7896 05:10:58,760 --> 05:10:59,760 VALIDITY FOR SCIENTIFIC 7897 05:10:59,760 --> 05:11:01,560 QUESTIONS OF SEPSIS USE DURING 7898 05:11:01,560 --> 05:11:06,280 PREGNANCY AN CHILD DEVELOPMENT. 7899 05:11:06,280 --> 05:11:07,840 SO HERE IS AN ILLUSTRATION OF 7900 05:11:07,840 --> 05:11:10,200 THE TIME LINE OF ADVANCE FOR 7901 05:11:10,200 --> 05:11:12,840 HBCD STUDY. I DON'T -- WON'T GO 7902 05:11:12,840 --> 05:11:15,400 INTO DETAILS BUT WANT TO MENTION 7903 05:11:15,400 --> 05:11:16,640 THESE ASSESSMENTS ARE CONDUCTED 7904 05:11:16,640 --> 05:11:18,720 IN BOTH ENGLISH AND SPANISH AND 7905 05:11:18,720 --> 05:11:21,920 CODED FOR BIAS. JUST UPDATE IN 7906 05:11:21,920 --> 05:11:24,720 THIS AREA IS HBCD STUDY 7907 05:11:24,720 --> 05:11:27,640 FINALIZED PROTOCOL FOR FOUR -- 7908 05:11:27,640 --> 05:11:29,800 FOR THE FIRST THREE VISIT VISIT. 7909 05:11:29,800 --> 05:11:31,160 THESE WILL REFLECT RECRUITMENT 7910 05:11:31,160 --> 05:11:33,320 IN THE SECOND TRIMESTER WHICH IS 7911 05:11:33,320 --> 05:11:35,880 VISIT ONE, 0 TO 1 MONTH WHICH IS 7912 05:11:35,880 --> 05:11:37,680 VISIT 2 AND 3 TO 9 MONTHS WHICH 7913 05:11:37,680 --> 05:11:39,880 IS VISIT 3. T ALL SITES HAVE 7914 05:11:39,880 --> 05:11:42,160 BEEN ACTIVELY ENGAGED IN 7915 05:11:42,160 --> 05:11:44,520 PILOTING THESE VISITS TO DATE 7916 05:11:44,520 --> 05:11:48,000 261 ADULTS AND 179 INFANTS HAVE 7917 05:11:48,000 --> 05:11:49,000 BEEN RECRUITED FOR PILOT 7918 05:11:49,000 --> 05:11:52,520 STUDIES. ON THE SITES WHO ARE 7919 05:11:52,520 --> 05:11:54,320 ENGAGED IN THE PILOT STUDIES ARE 7920 05:11:54,320 --> 05:11:56,040 EXPECTED TO PILOT ALL ELEMENTS 7921 05:11:56,040 --> 05:11:59,560 BEFORE MOVING INTO COHORT 7922 05:11:59,560 --> 05:12:01,200 RECRUITMENT EXPECTED TO TAKE 7923 05:12:01,200 --> 05:12:02,480 PLACE IN MAY AND JUNE OF THIS 7924 05:12:02,480 --> 05:12:05,360 YEAR. MEANWHILE THE HBCD DATA 7925 05:12:05,360 --> 05:12:09,200 COORDINATING CENTER CONTINUES TO 7926 05:12:09,200 --> 05:12:10,040 ESTABLISH TECHNOLOGY FOR DATA 7927 05:12:10,040 --> 05:12:12,640 COLLECTION, UPLOAD AND 7928 05:12:12,640 --> 05:12:16,480 HARMONIZATION. LATER THIS MONTH 7929 05:12:16,480 --> 05:12:17,760 APRIL 17 THROUGH 19 TRAIN THE 7930 05:12:17,760 --> 05:12:19,040 TRAINER EVENT WILL TAKE PLACE 7931 05:12:19,040 --> 05:12:20,720 AND THIS MEETING WILL BEGIN 7932 05:12:20,720 --> 05:12:23,640 PREPARING RESEARCH STAFF FOR 7933 05:12:23,640 --> 05:12:28,800 VISITS 4 THROUGH 7 OF THE STUDY 7934 05:12:28,800 --> 05:12:30,400 THE CONCLUSION, THANK YOU FOR 7935 05:12:30,400 --> 05:12:31,200 THE OPPORTUNITY ONCE AGAIN TO 7936 05:12:31,200 --> 05:12:34,000 PROVIDE NIDA UPDATES. HERE I 7937 05:12:34,000 --> 05:12:36,160 HAVE MY AS WELL AS MY 7938 05:12:36,160 --> 05:12:36,960 COLLEAGUE'S EMAIL ADDRESS. IF 7939 05:12:36,960 --> 05:12:38,320 YOU HAVE ANY QUESTIONS FEEL FREE 7940 05:12:38,320 --> 05:12:39,680 TO REACH OUT TO US. WE WILL BE 7941 05:12:39,680 --> 05:12:41,760 HAPPY TO CONNECT. HAVE A GREAT 7942 05:12:41,760 --> 05:12:43,200 DAY AND I HOPE YOU ENJOY THE 7943 05:12:43,200 --> 05:12:53,560 MEETING. THANK YOU. 7944 05:12:54,200 --> 05:12:56,280 >> ALL RIGHT. THANK YOU FOR VERY 7945 05:12:56,280 --> 05:13:01,320 INFORMATIVE PRESENTATIONS. AND 7946 05:13:01,320 --> 05:13:04,280 UPDATES ON RESEARCH SUPPORTED BY 7947 05:13:04,280 --> 05:13:06,560 NIH INSTITUTES. ZOOM 7948 05:13:06,560 --> 05:13:07,960 PARTICIPANTS NOW IT IS TIME TO 7949 05:13:07,960 --> 05:13:09,920 TURN ON YOUR CAMERAS. I KNOW IT 7950 05:13:09,920 --> 05:13:12,360 IS LATE IN THE DAY AFTER LONG 7951 05:13:12,360 --> 05:13:13,800 DAY. I HOPE WE STILL CAN SEE 7952 05:13:13,800 --> 05:13:18,760 EACH OTHER. FOR THOSE OF US WHO 7953 05:13:18,760 --> 05:13:22,040 WATCH ON VIDEOCAST, PLEASE 7954 05:13:22,040 --> 05:13:26,560 REMEMBER YOU CAN SUBMIT LIVE 7955 05:13:26,560 --> 05:13:27,640 FEEDBACK COMMENTS AND QUESTIONS 7956 05:13:27,640 --> 05:13:32,360 TO US AND DR. BILL DUNTY AND I 7957 05:13:32,360 --> 05:13:34,280 WILL DO THE BEST BRING YOUR 7958 05:13:34,280 --> 05:13:36,000 COMMENTS TO DISCUSSION TODAY. 7959 05:13:36,000 --> 05:13:39,040 WE ARE ALSO GOING TO PROVIDE ALL 7960 05:13:39,040 --> 05:13:42,360 YOUR QUESTIONS AN COMMENTS TO 7961 05:13:42,360 --> 05:13:44,840 ICCFASD MEMBERS AND TO INVITED 7962 05:13:44,840 --> 05:13:47,400 SPEAKERS AS WELL. WE WILL REALLY 7963 05:13:47,400 --> 05:13:51,400 -- WE WANT AND WE LOVE TO HEAR 7964 05:13:51,400 --> 05:13:52,720 FROM YOU. NOW I DON'T WANT THE 7965 05:13:52,720 --> 05:13:55,320 TAKE MUCH TIME SO NOW IT IS TIME 7966 05:13:55,320 --> 05:14:00,280 TO DISCUSS IN EACH PRESENTATIONS 7967 05:14:00,280 --> 05:14:02,120 WHAT QUESTIONS MEMBERS AN GUESTS 7968 05:14:02,120 --> 05:14:03,880 HAVE. PLEASE TURN ON YOUR 7969 05:14:03,880 --> 05:14:05,480 CAMERAS IF YOU HAVE DIFFICULTY 7970 05:14:05,480 --> 05:14:08,120 TO DO SO CONTACT ME OR ONE OF 7971 05:14:08,120 --> 05:14:16,840 OUR HOSTS. 7972 05:14:16,840 --> 05:14:18,560 >> TATIANA, I DON'T SEE 7973 05:14:18,560 --> 05:14:20,480 QUESTIONS FROM THE PUBLIC. AS OF 7974 05:14:20,480 --> 05:14:21,320 YET. 7975 05:14:21,320 --> 05:14:26,480 >> OKAY. 7976 05:14:26,480 --> 05:14:29,160 >> I CAN BEGIN WITH ONE QUESTION 7977 05:14:29,160 --> 05:14:34,640 WHICH I KEEP THINKING ABOUT TH 7978 05:14:34,640 --> 05:14:37,000 THAT. WE HAVE HERE TODAY VERY 7979 05:14:37,000 --> 05:14:40,160 INTERESTING PRESENTATION BY 7980 05:14:40,160 --> 05:14:41,760 CHRISTIE PETRENKO ABOUT 7981 05:14:41,760 --> 05:14:43,120 RESEARCH AND HOW SHE ENGAGES 7982 05:14:43,120 --> 05:14:45,360 COMMUNITY PEOPLE WITH THE FASD 7983 05:14:45,360 --> 05:14:47,320 AND CLEARANCE IN HER RESEARCH 7984 05:14:47,320 --> 05:14:50,960 WHEN SHE DEVELOPS NEW PROGRAMS. 7985 05:14:50,960 --> 05:14:55,920 SO MY QUESTION TO NIH IS 7986 05:14:55,920 --> 05:14:58,800 INSTITUTES WHAT EXPERIENCES THAT 7987 05:14:58,800 --> 05:15:00,240 YOU HAVE IN STUDIES HOW YOU SEE 7988 05:15:00,240 --> 05:15:03,880 THIS BECAUSE I DO SEE THIS AS A 7989 05:15:03,880 --> 05:15:05,000 TRENDS. WE DIDN'T HAVE THIS 7990 05:15:05,000 --> 05:15:06,400 TYPE OF RESEARCH 20 YEARS AGO. 7991 05:15:06,400 --> 05:15:11,200 WE HAVE IT NOW. THIS IS MY FIRST 7992 05:15:11,200 --> 05:15:12,840 QUESTION, AND RELATED TO THIS DO 7993 05:15:12,840 --> 05:15:19,720 YOU SEE THAT IT ALSO FEELS HOW 7994 05:15:19,720 --> 05:15:22,040 APPROACHES -- OUTCOMES IT IS 7995 05:15:22,040 --> 05:15:24,520 MORE FORMATIVE STAGE WHEN PEOPLE 7996 05:15:24,520 --> 05:15:27,120 DEVELOP PROJECT BUT I HAVEN'T 7997 05:15:27,120 --> 05:15:29,400 SEEN MUCH WHEN THEY IDENTIFY 7998 05:15:29,400 --> 05:15:32,200 WHAT IS THE OUTCOME, WHAT IS 7999 05:15:32,200 --> 05:15:34,640 YOUR TARGET,. SO JUST WANT TO 8000 05:15:34,640 --> 05:15:38,520 HAVE YOUR COMMENTS ON THIS. I 8001 05:15:38,520 --> 05:15:41,760 DON'T KNOW WHO WILL ANSWER. 8002 05:15:41,760 --> 05:15:49,920 BILL, TRACY. WE TRACY. 8003 05:15:49,920 --> 05:15:51,560 >> WHAT I WAS GOING TO SAY, WE 8004 05:15:51,560 --> 05:15:55,360 DO SEE THIS AS SOMETHING THAT IS 8005 05:15:55,360 --> 05:15:57,160 -- BEGINNING TO SEE MORE AND 8006 05:15:57,160 --> 05:15:59,360 MORE, AS YOU KNOW. FOR THE WORK 8007 05:15:59,360 --> 05:16:01,920 THAT IS SUPPORTED IN MY AND 8008 05:16:01,920 --> 05:16:02,920 CHRIS'S BRANCH DEVELOPMENTAL 8009 05:16:02,920 --> 05:16:07,960 SIDE OF THINGS, IT IS HARDER TO 8010 05:16:07,960 --> 05:16:13,440 BRING IN, EASY TO BRING IN 8011 05:16:13,440 --> 05:16:16,880 PARENTS AS AS PARTNERS, HARDER 8012 05:16:16,880 --> 05:16:17,560 TO ACTUALLY BRING IN THE 8013 05:16:17,560 --> 05:16:18,680 CHILDREN BECAUSE YOU RUN INTO 8014 05:16:18,680 --> 05:16:22,160 THE QUESTIONS OF WHAT THEY CAN 8015 05:16:22,160 --> 05:16:25,320 CONSENT TO AND NOT. WE NIMH 8016 05:16:25,320 --> 05:16:28,520 RECENTLY ISSUES AN RFA ON SOCIAL 8017 05:16:28,520 --> 05:16:31,560 MEDIA AND THERE WERE ENCOURAGING 8018 05:16:31,560 --> 05:16:35,040 THE USE OF YOUTH ADVISORY 8019 05:16:35,040 --> 05:16:36,680 BOARDS. WE WILL START TO SEE 8020 05:16:36,680 --> 05:16:38,720 THAT TYPE OF YOUTH ENGAGEMENT A 8021 05:16:38,720 --> 05:16:44,440 BIT MORE. IN THE FUTURE. 8022 05:16:44,440 --> 05:16:47,280 >> THANK YOU. I THINK MY 8023 05:16:47,280 --> 05:16:49,200 COMMENTS ARE SIMILAR TO JULIAS. 8024 05:16:49,200 --> 05:16:54,520 WE DEFINITELY ARE MOVING TOWARDS 8025 05:16:54,520 --> 05:16:57,880 ENCOURAGING IF NOT OUTRIGHT 8026 05:16:57,880 --> 05:16:59,720 REQUIRING INPUT AND PERSPECTIVES 8027 05:16:59,720 --> 05:17:00,480 OF PERSONS WITH LIVED 8028 05:17:00,480 --> 05:17:02,720 EXPERIENCES IN OUR RESEARCH. I 8029 05:17:02,720 --> 05:17:06,120 THINK FOR US AT NICHD, THAT ENDS 8030 05:17:06,120 --> 05:17:08,920 UP APPLYING MOST TO INDIVIDUALS 8031 05:17:08,920 --> 05:17:12,320 WITH RARE CONDITIONS OR WITH 8032 05:17:12,320 --> 05:17:13,320 INTELLECTUAL DEVELOPMENTAL 8033 05:17:13,320 --> 05:17:17,200 DISABILITIES OR PHYSICAL 8034 05:17:17,200 --> 05:17:19,760 DISABILITIES, BUT IT IS TRUE 8035 05:17:19,760 --> 05:17:22,480 ACROSS MOST OF NICHD PORTFOLIO. 8036 05:17:22,480 --> 05:17:24,160 REALLY TRYING TO MAKE SURE THAT 8037 05:17:24,160 --> 05:17:27,920 THE PERSPECTIVES OF THE PERSON'S 8038 05:17:27,920 --> 05:17:30,680 TO WHOM RESEARCH IS RELEVANT ARE 8039 05:17:30,680 --> 05:17:33,880 ACTUALLY HAVE INPUT INTO THE 8040 05:17:33,880 --> 05:17:36,400 QUESTIONS BEING ASKED. 8041 05:17:36,400 --> 05:17:41,520 >> THANK YOU, VERY MUCH. I'M 8042 05:17:41,520 --> 05:17:44,760 JUST TAKING -- I REMEMBER JAN I 8043 05:17:44,760 --> 05:17:46,840 THINK IS STILL WITH US, I 8044 05:17:46,840 --> 05:17:50,480 REMEMBER JAN'S COMMENT ON 8045 05:17:50,480 --> 05:17:52,640 OUTCOMES, WHAT IS OUTCOMES. HOW 8046 05:17:52,640 --> 05:17:54,520 OUTCOMES AND PROGRAMS NOT 8047 05:17:54,520 --> 05:17:57,080 NECESSARILY JUST RESEARCH 8048 05:17:57,080 --> 05:17:59,880 PROGRAMS BUT PROGRAMS AS WELL, 8049 05:17:59,880 --> 05:18:01,920 WHAT IS YOUR OUTCOME, IT MAY BE 8050 05:18:01,920 --> 05:18:05,320 IMPORTANT TO DISCUSS AND LOOK AT 8051 05:18:05,320 --> 05:18:08,840 COMMUNITY TO BE SURE WE TARGET 8052 05:18:08,840 --> 05:18:10,840 OUTCOMES THAT PEOPLE WANT US TO 8053 05:18:10,840 --> 05:18:13,160 TARGET AND NEED. ALL RIGHT. 8054 05:18:13,160 --> 05:18:15,320 FLOOR IS OPEN FOR OTHER 8055 05:18:15,320 --> 05:18:19,160 QUESTIONS AND COMMENTS. ABOUT 8056 05:18:19,160 --> 05:18:19,360 NIH -- 8057 05:18:19,360 --> 05:18:22,440 >> TATIANA, JUST ONE COMMENT I 8058 05:18:22,440 --> 05:18:23,920 WOULD ADD. REGARDING YOUR 8059 05:18:23,920 --> 05:18:26,640 PREVIOUS QUESTION. I THINK SOME 8060 05:18:26,640 --> 05:18:28,600 OF THAT COMES FROM THE FUNDING 8061 05:18:28,600 --> 05:18:30,280 AGENCIES BUT I THINK SOME OF THE 8062 05:18:30,280 --> 05:18:35,120 DESIRE TO INCLUDE INDIVIDUALS 8063 05:18:35,120 --> 05:18:37,360 WITH FASD DEFINITELY COMES FROM 8064 05:18:37,360 --> 05:18:40,440 RESEARCHERS THEMSELVES. I WAS 8065 05:18:40,440 --> 05:18:44,000 PART OF A CONSORTIUM MEETING AND 8066 05:18:44,000 --> 05:18:49,080 THERE WERE MAYBE A DOZEN FASD 8067 05:18:49,080 --> 05:18:50,240 RESEARCHERS AT I BELIEVE 8068 05:18:50,240 --> 05:18:53,320 VANCOUVER MEETING, THEY INVITED 8069 05:18:53,320 --> 05:18:56,040 INDIVIDUALS WITH FASD TO COME 8070 05:18:56,040 --> 05:18:58,440 INTO THEIR CLOSED FACE TO SPACE 8071 05:18:58,440 --> 05:19:01,720 MEETING AND TELL THEM WHAT DO 8072 05:19:01,720 --> 05:19:04,400 YOU WANT US TO STUDY? AND REALLY 8073 05:19:04,400 --> 05:19:07,200 IT WAS JUST KIND OF A LISTENING 8074 05:19:07,200 --> 05:19:09,440 AND INFORMATION EXCHANGE 8075 05:19:09,440 --> 05:19:12,320 SESSION. SO I THINK WE ALSO HAVE 8076 05:19:12,320 --> 05:19:15,320 TO KEEP THE RESEARCHERS IN MIND 8077 05:19:15,320 --> 05:19:20,880 AND THEIR DESIRE TO INCLUDE 8078 05:19:20,880 --> 05:19:23,160 INDIVIDUALS IN THEIR RESEARCH. 8079 05:19:23,160 --> 05:19:25,800 >> I WOULD ADD TO THAT, BILL, 8080 05:19:25,800 --> 05:19:27,440 THEY HAVE BEEN INVITED BACK, 8081 05:19:27,440 --> 05:19:29,480 DOING IT AGAIN NEXT WEEK. AND 8082 05:19:29,480 --> 05:19:30,920 THEY HAVE BEEN GIVEN SOME 8083 05:19:30,920 --> 05:19:32,160 QUESTIONS AND SPECIFICALLY ABOUT 8084 05:19:32,160 --> 05:19:36,080 WHAT IS THE RESEARCH YOU WANT TO 8085 05:19:36,080 --> 05:19:38,280 SEE. THEY ARE WORKING ON A VERY 8086 05:19:38,280 --> 05:19:40,200 LONG LIST OF THINGS AND TRYING 8087 05:19:40,200 --> 05:19:42,000 TO PRIORITIZE OKAY CATEGORIES 8088 05:19:42,000 --> 05:19:44,360 WHERE WE WANT TO SEE FIRST. THAT 8089 05:19:44,360 --> 05:19:46,120 COVERS ALL THE AREAS FROM HEALTH 8090 05:19:46,120 --> 05:19:49,160 TO MENTAL HEALTH TO QUALITY OF 8091 05:19:49,160 --> 05:19:51,240 LIFE TO THE OTHER ISSUES THEY 8092 05:19:51,240 --> 05:19:53,440 ARE AWARE OF THAT CRIMINAL 8093 05:19:53,440 --> 05:19:56,680 JUSTICE WHICH IS A BIG ONE. SO 8094 05:19:56,680 --> 05:19:58,120 YEAH, WHAT -- THEY REALLY DO 8095 05:19:58,120 --> 05:20:01,800 WANT TO KNOW WHAT THIS COMMUNITY 8096 05:20:01,800 --> 05:20:02,960 WANTS. . 8097 05:20:02,960 --> 05:20:07,600 >> THANK YOU. I CAN SEE TRISH 8098 05:20:07,600 --> 05:20:08,080 POWELL. 8099 05:20:08,080 --> 05:20:09,760 >> YOU PARTLY ADDRESSED IT, I 8100 05:20:09,760 --> 05:20:11,560 WAS GOING TO ASK YOU WE HAVE 8101 05:20:11,560 --> 05:20:13,360 HEARD ABOUT THE SERVICES THAT 8102 05:20:13,360 --> 05:20:16,080 ARE NEEDED. AND WHAT PEOPLE 8103 05:20:16,080 --> 05:20:19,120 WOULD LIKE TO SEE HERE, WHAT 8104 05:20:19,120 --> 05:20:20,760 CANDIDATE IS PROVIDED THAT WE 8105 05:20:20,760 --> 05:20:22,000 DON'T HAVE AT THIS POINT, THOSE 8106 05:20:22,000 --> 05:20:24,120 KIND OF THINGS BUT FROM THE 8107 05:20:24,120 --> 05:20:26,000 RESEARCH PERSPECTIVE, THE NIH 8108 05:20:26,000 --> 05:20:27,480 RESEARCH PERSPECTIVE IT WOULD BE 8109 05:20:27,480 --> 05:20:28,800 GOOD TO HEAR A COUPLE OF THINGS 8110 05:20:28,800 --> 05:20:30,480 THAT PEOPLE WOULD REALLY LIKE 8111 05:20:30,480 --> 05:20:34,080 FOR US TO STUDY, THOSE $64,000 8112 05:20:34,080 --> 05:20:36,840 QUESTIONS IF WE CAN ANSWER WOULD 8113 05:20:36,840 --> 05:20:40,200 REALLY HELP PEOPLE IN THEIR 8114 05:20:40,200 --> 05:20:43,400 LIVES. . 8115 05:20:43,400 --> 05:20:45,080 >> I CAN'T SPEAK FOR THEM 8116 05:20:45,080 --> 05:20:47,200 BECAUSE THEY ARE PUTTING 8117 05:20:47,200 --> 05:20:52,640 TOGETHER THEIR LAUNDRY LIST 8118 05:20:52,640 --> 05:20:53,760 RIGHT NOW BUT THERE ARE LOT OF 8119 05:20:53,760 --> 05:20:55,080 THINGS THAT COME TO MIND. THERE 8120 05:20:55,080 --> 05:21:00,200 ARE A LOT OF JUST HEALTH ISSUES, 8121 05:21:00,200 --> 05:21:01,800 ONE OF THE THINGS I CAN SAY 8122 05:21:01,800 --> 05:21:04,560 BECAUSE THIS WAS JUST DISCUSSED 8123 05:21:04,560 --> 05:21:07,240 THE OTHER DAY THEY NEED A 8124 05:21:07,240 --> 05:21:09,160 LONGITUDINAL STUDY, QUESTION IS 8125 05:21:09,160 --> 05:21:11,040 WHY HAS NOBODY DONE THIS, WHY 8126 05:21:11,040 --> 05:21:12,320 DOES EVERYBODY STOP LOOKING AT 8127 05:21:12,320 --> 05:21:13,480 THIS REGARDLESS OF THE PIECE YOU 8128 05:21:13,480 --> 05:21:17,040 LOOK AT WHEN THEY HIT AGE OF 8129 05:21:17,040 --> 05:21:17,880 MAJORITY, WAIVER THAT MIGHT BE 8130 05:21:17,880 --> 05:21:19,080 WHERE YOU LIVE. NOBODY KNOWS 8131 05:21:19,080 --> 05:21:25,320 WHAT HAPPENS LONG TERM. THEY 8132 05:21:25,320 --> 05:21:26,960 HAVE IDEAS AND OWN EXPERIENCES 8133 05:21:26,960 --> 05:21:28,400 THEY KNOW BECAUSE THEY ARE SOME 8134 05:21:28,400 --> 05:21:29,520 UP INTO EARLY 50s WHAT 8135 05:21:29,520 --> 05:21:30,720 HAPPENS. BUT THE QUESTION 8136 05:21:30,720 --> 05:21:33,360 REALLY IS FROM A RESEARCH 8137 05:21:33,360 --> 05:21:36,800 PERSPECTIVE, WHAT IS THE LONG 8138 05:21:36,800 --> 05:21:38,720 TERM? IN ALL THOSE AREAS 8139 05:21:38,720 --> 05:21:40,040 BROADLY, WHAT DO WE KNOW, WHAT 8140 05:21:40,040 --> 05:21:41,880 DO WE DON'T KNOW, WHAT DO WE 8141 05:21:41,880 --> 05:21:44,640 THINK AND HOW DO WE PREPARE FOR 8142 05:21:44,640 --> 05:21:47,000 WHATEVER THOSE LONG TERM ISSUES 8143 05:21:47,000 --> 05:21:48,480 ARE BECAUSE THEY SEEM TO BE 8144 05:21:48,480 --> 05:21:49,280 SIGNIFICANT AND THERE ARE THINGS 8145 05:21:49,280 --> 05:21:51,040 I KNOW FROM THE HEALTH SURVEY 8146 05:21:51,040 --> 05:21:52,360 THAT THE GROUP DID, THERE ARE 8147 05:21:52,360 --> 05:21:54,800 SOME QUESTIONS THEY DIDN'T ASK 8148 05:21:54,800 --> 05:21:55,800 THEY SINCE HEARD FROM 8149 05:21:55,800 --> 05:21:57,720 SIGNIFICANT NUMBERS OF ADULTS, 8150 05:21:57,720 --> 05:22:00,120 THEY SHOULD HAVE ASKED. IN TERMS 8151 05:22:00,120 --> 05:22:07,360 OF HEALTH ISSUES ONE BEING IRON 8152 05:22:07,360 --> 05:22:11,520 LEVEL, THE IRON DEFICIENCY IS 8153 05:22:11,520 --> 05:22:13,360 VERY PREVALENT IN ADULTS AND 8154 05:22:13,360 --> 05:22:16,440 DOESN'T SEEM EASE I REMEDIABLE 8155 05:22:16,440 --> 05:22:18,480 WITH IRON SUPPLEMENT, IT DOESN'T 8156 05:22:18,480 --> 05:22:19,760 MAKE A DIFFERENCE SO WHAT CAUSES 8157 05:22:19,760 --> 05:22:21,280 THIS AND IF YOU LOOK AT THE 8158 05:22:21,280 --> 05:22:23,240 SEQUELAE OF EVENTS THAT HAPPENS 8159 05:22:23,240 --> 05:22:24,400 WHEN YOU HAVE LOW IRON OR 8160 05:22:24,400 --> 05:22:28,480 THYROID IS OFF, WHAT PART IS 8161 05:22:28,480 --> 05:22:30,200 WATCH FOR INSTANCE ONE OF THE 8162 05:22:30,200 --> 05:22:31,120 QUESTIONS IS HOW MANY THINGS 8163 05:22:31,120 --> 05:22:32,640 WRITTEN OFF AS MENTAL HEALTH 8164 05:22:32,640 --> 05:22:34,520 ISSUES ACTUALLY HAVE THEIR 8165 05:22:34,520 --> 05:22:36,160 GENESIS IN SOMETHING ELSE THAT 8166 05:22:36,160 --> 05:22:37,360 IS PHYSICAL THAT COULD BE 8167 05:22:37,360 --> 05:22:38,760 ADDRESSED WHICH MIGHT IMPROVE 8168 05:22:38,760 --> 05:22:43,040 MENTAL HEALTH SIGNIFICANTLY. 8169 05:22:43,040 --> 05:22:45,280 >> I THINK ANOTHER THING, FOR ME 8170 05:22:45,280 --> 05:22:50,760 AS AN INDIVIDUAL WHO YES I'M 34 8171 05:22:50,760 --> 05:22:54,280 BUT AS AN ADULT I'M TECHNICALLY 8172 05:22:54,280 --> 05:22:56,600 CONSIDERED A SENIOR WITHIN FASD 8173 05:22:56,600 --> 05:23:01,760 IN A WAY. AND SO THE THING IS, 8174 05:23:01,760 --> 05:23:04,200 IS THAT IF IN TERMS OF MEDICAL 8175 05:23:04,200 --> 05:23:07,440 SYSTEM OR IN TERMS OF FIGURING 8176 05:23:07,440 --> 05:23:11,880 OUT WHAT HAPPENS TO US AS WE GET 8177 05:23:11,880 --> 05:23:15,640 OLDER, THAT IS REALLY -- THOSE 8178 05:23:15,640 --> 05:23:17,480 QUESTIONS HAVE COME OUT OF THE 8179 05:23:17,480 --> 05:23:22,520 HEALTH SURVEY OF MILES, CJ AND 8180 05:23:22,520 --> 05:23:25,720 EMILY. SO IT IS A QUESTION OF 8181 05:23:25,720 --> 05:23:29,960 OKAY THIS SURVEY IS OUT THERE, 8182 05:23:29,960 --> 05:23:31,880 THE RESULTS HAVE BEEN GETTING 8183 05:23:31,880 --> 05:23:33,080 REPLICATED AND WE KNOW THIS 8184 05:23:33,080 --> 05:23:40,960 WHICH IS GREAT. BUT IF I CAN BE 8185 05:23:40,960 --> 05:23:43,960 BLOUNT, IF WE ARE COSTING SO 8186 05:23:43,960 --> 05:23:47,480 MUCH MONEY NOW, WHAT IS 8187 05:23:47,480 --> 05:23:51,040 POTENTIALLY GOING TO HAPPEN WHEN 8188 05:23:51,040 --> 05:23:56,960 WE DO HAVE MORE MEDICAL 8189 05:23:56,960 --> 05:23:59,840 PROCEDURES OR WE NEED MORE HELP? 8190 05:23:59,840 --> 05:24:06,360 OR WE DO HAVE MORE RISK OF 8191 05:24:06,360 --> 05:24:09,240 DEMENTIA, ALZHEIMER'S, LONG TERM 8192 05:24:09,240 --> 05:24:10,680 CARE, MY QUESTION THEN IS WHAT 8193 05:24:10,680 --> 05:24:17,160 THEN? IF I CAN. 8194 05:24:17,160 --> 05:24:19,520 >> THANK YOU, KAT. APPRECIATE 8195 05:24:19,520 --> 05:24:22,600 YOUR CANDOR. 8196 05:24:22,600 --> 05:24:27,400 >> AND YOUR BRILLIANT POINTS. I 8197 05:24:27,400 --> 05:24:28,640 MADE A MILLION NOTES DURING THIS 8198 05:24:28,640 --> 05:24:32,200 MEETING. ALL RIGHT. ANY 8199 05:24:32,200 --> 05:24:34,440 COMMENTS, ADDITIONAL COMMENTS ON 8200 05:24:34,440 --> 05:24:39,560 THE RESEARCH AND PRESENTATIONS? 8201 05:24:39,560 --> 05:24:43,280 >> I WOULD JUST ADD THAT I THINK 8202 05:24:43,280 --> 05:24:46,520 IT WAS JAN'S COMMENT ABOUT 8203 05:24:46,520 --> 05:24:49,160 -- LONGITUDINAL 8204 05:24:49,160 --> 05:24:52,160 STUDY, I WANT TO POINT OUT THAT 8205 05:24:52,160 --> 05:24:56,200 NIAAA HAS FUNDED A I GUESS A 8206 05:24:56,200 --> 05:24:59,960 HEALTH OUTCOME IN ADULTS STUDY 8207 05:24:59,960 --> 05:25:04,040 THAT WAS LED BY CLAIRE COLE AND 8208 05:25:04,040 --> 05:25:08,520 JOANNE WINEBERG AS PART OF CFAS 8209 05:25:08,520 --> 05:25:10,880 4 PROPOSAL. THAT IS I BELIEVE IN 8210 05:25:10,880 --> 05:25:14,080 A NO COST EXTENSION BUT 8211 05:25:14,080 --> 05:25:15,400 PUBLICATIONS ARE JUST STARTING 8212 05:25:15,400 --> 05:25:17,280 TO COME OUT FROM THAT. THEY ARE 8213 05:25:17,280 --> 05:25:18,880 ALSO CONTINUING THOSE STUDIES TO 8214 05:25:18,880 --> 05:25:22,720 NOW FOCUS ON THE IMMUNE SYSTEM 8215 05:25:22,720 --> 05:25:24,360 AND ENDOCRINE FUNCTION AND HOW 8216 05:25:24,360 --> 05:25:28,800 THAT RELATES TO HEALTH OUTCOMES 8217 05:25:28,800 --> 05:25:32,000 AND MENTAL HEALTH OUTCOMES AS 8218 05:25:32,000 --> 05:25:34,640 WELL. THAT STUDY WAS JUST FUNDED 8219 05:25:34,640 --> 05:25:35,880 LAST FISCAL YEAR. 8220 05:25:35,880 --> 05:25:38,120 >> THANK YOU, BILL, I'M VERY 8221 05:25:38,120 --> 05:25:40,040 AWARE OF THAT. VERY AWAREST NEED 8222 05:25:40,040 --> 05:25:45,400 FOR THAT. BUT I ALSO WOULD LIKE 8223 05:25:45,400 --> 05:25:47,920 -- PIE IN THE SKY BUT 8224 05:25:47,920 --> 05:25:50,640 LONGITUDINALLY I THINK WHAT THE 8225 05:25:50,640 --> 05:25:51,960 GROUP AND MANY FAMILIES ARE 8226 05:25:51,960 --> 05:25:53,320 SAYING IS WHEN THEY SAY 8227 05:25:53,320 --> 05:25:54,760 LONGITUDINAL WE ARE NOT TALKING 8228 05:25:54,760 --> 05:25:58,520 FIVE OR TEN YEARS, WE ARE LARK 8229 05:25:58,520 --> 05:26:00,320 GROUP GET AS MANY AS YOU CAN AND 8230 05:26:00,320 --> 05:26:01,800 FOLLOW THEM FROM -- AND IT WOULD 8231 05:26:01,800 --> 05:26:03,760 BE INTERESTING ALSO TO RECRUIT 8232 05:26:03,760 --> 05:26:04,960 CHILDREN AND START FOLLOWING 8233 05:26:04,960 --> 05:26:06,480 FROM A VERY YOUNG AGE RIGHT 8234 05:26:06,480 --> 05:26:08,040 THROUGH THE LIFE SPAN. THERE 8235 05:26:08,040 --> 05:26:09,760 HAVE BEEN THE NURSES STUDIES AND 8236 05:26:09,760 --> 05:26:11,600 THINGS THAT HAVE DONE AND IT 8237 05:26:11,600 --> 05:26:13,160 FOLLOWED LARGE GROUPS FOR MANY, 8238 05:26:13,160 --> 05:26:15,360 MANY YEARS AND IT MIGHT BE 8239 05:26:15,360 --> 05:26:16,360 SOMETHING TO DO WITH THIS 8240 05:26:16,360 --> 05:26:18,600 BECAUSE REALISTICALLY THERE IS 8241 05:26:18,600 --> 05:26:22,000 NOT A LOT REALLY KNOWN ALMOST 8242 05:26:22,000 --> 05:26:23,240 NOTHING WHERE THIS GOES LONG 8243 05:26:23,240 --> 05:26:25,120 TERM. WHO FALLS OFF THE FACE OF 8244 05:26:25,120 --> 05:26:27,360 THE EARTH? ARE THEY FUNCTIONING 8245 05:26:27,360 --> 05:26:29,800 WELL AND JUST DISAPPEAR? OR DO 8246 05:26:29,800 --> 05:26:33,800 THEY DIE REALLY EARLY? WHAT 8247 05:26:33,800 --> 05:26:35,120 HAPPENED? IF YOU WANTED THE 8248 05:26:35,120 --> 05:26:36,360 COMPLETE PICTURE IT'S PROBABLY 8249 05:26:36,360 --> 05:26:38,520 THE ONLY WAY TO GET IT IS TO 8250 05:26:38,520 --> 05:26:39,400 REALLY LOOK AT IT. 8251 05:26:39,400 --> 05:26:41,440 >> I WILL ADD ANOTHER STUDY 8252 05:26:41,440 --> 05:26:45,600 POPPED INTO MIND, THAT WAS SPIN 8253 05:26:45,600 --> 05:26:48,840 OFF OF THE PAST IN NETWORK 8254 05:26:48,840 --> 05:26:50,280 STUDIES SO THIS WAS A STUDY AT 8255 05:26:50,280 --> 05:26:52,440 THE IMPACT OF PRE-NATAL ALCOHOL 8256 05:26:52,440 --> 05:26:54,760 AND SIDS AND STILLBIRTH, THAT 8257 05:26:54,760 --> 05:26:57,240 STUDY WAS DONE IN SOUTH AFRICA 8258 05:26:57,240 --> 05:26:59,120 AND NORTHERN PLAINS, SUPPORTED 8259 05:26:59,120 --> 05:27:02,600 BY NIAAA, AND NICHD. AND THAT 8260 05:27:02,600 --> 05:27:07,280 WAS A STUDY FOCUSED ON 8261 05:27:07,280 --> 05:27:10,680 STILLBIRTH AND SIDS. HOWEVER, 8262 05:27:10,680 --> 05:27:13,880 INVESTIGATORS PUT IN ADDITIONAL 8263 05:27:13,880 --> 05:27:16,240 GRANT PROPOSALS AND HAVE BEEN 8264 05:27:16,240 --> 05:27:21,320 FUNDED TO NOW FOLLOW THOSE IN 8265 05:27:21,320 --> 05:27:22,960 WHAT WE ARE INFANTS OR EVEN 8266 05:27:22,960 --> 05:27:28,120 BEFORE THAT INTO NOW IN THEIR 8267 05:27:28,120 --> 05:27:29,440 EARLY TEENS. SOME OF THOSE 8268 05:27:29,440 --> 05:27:31,000 STUDIES ARE BEING DONE, THEY MAY 8269 05:27:31,000 --> 05:27:33,440 NOT BE AT SCALE JAN THAT WHAT 8270 05:27:33,440 --> 05:27:36,760 YOU ARE TALKING ABOUT BUT I JUST 8271 05:27:36,760 --> 05:27:38,480 WANTED TO MAKE FOLKS AWARE THOSE 8272 05:27:38,480 --> 05:27:43,600 STUDIES. 8273 05:27:43,600 --> 05:27:46,080 >> I ALSO THOUGHT ONE OF 8274 05:27:46,080 --> 05:27:50,360 COMMENTS WHICH WAS MADE TODAY 8275 05:27:50,360 --> 05:27:53,840 THAT PROVIDED INTERVENTION FOR 8276 05:27:53,840 --> 05:27:57,960 FASD AND PROVIDES SUPPORT, IT IS 8277 05:27:57,960 --> 05:28:00,280 PREVENTION AND I THINK THIS 8278 05:28:00,280 --> 05:28:02,440 MESSAGE HAS BEEN RECEIVED WELL. 8279 05:28:02,440 --> 05:28:09,400 AND HAS BEEN DISCUSSED AND 8280 05:28:09,400 --> 05:28:11,200 DEFINITELY UNDERSTANDING OF 8281 05:28:11,200 --> 05:28:12,640 NEEDS WHICH HASN'T BEEN DONE 8282 05:28:12,640 --> 05:28:17,600 VERY MUCH IN RECENT. ALL RIGHT. 8283 05:28:17,600 --> 05:28:20,920 WE HAVE ONE MINUTE TO -- IF YOU 8284 05:28:20,920 --> 05:28:22,440 HAVE ANY ADDITIONAL QUESTIONS TO 8285 05:28:22,440 --> 05:28:25,640 NIH, IF NOT, WE CAN MOVE TO 8286 05:28:25,640 --> 05:28:28,680 GENERAL DISCUSSION. SO NOW WE 8287 05:28:28,680 --> 05:28:32,800 WILL OPEN TO QUESTIONS AND 8288 05:28:32,800 --> 05:28:33,800 COMMENTS RELATED TO ALL MEETING 8289 05:28:33,800 --> 05:28:38,120 TODAY. WE HAD VERY INFORMATIVE, 8290 05:28:38,120 --> 05:28:40,240 VERY INTERESTING MEETING AND 8291 05:28:40,240 --> 05:28:41,800 AGAIN THANK YOU SO MUCH FOR YOUR 8292 05:28:41,800 --> 05:28:45,560 PARTICIPATION. QUESTIONS AND 8293 05:28:45,560 --> 05:28:55,600 COMMENTS, FLOOR IS OPEN. 8294 05:28:55,600 --> 05:28:58,720 >> JUST A COMMENT. WE DID 8295 05:28:58,720 --> 05:29:00,080 RECEIVE SEVERAL COMMENTS FROM 8296 05:29:00,080 --> 05:29:02,880 THE PUBLIC SHARING SIMILAR 8297 05:29:02,880 --> 05:29:04,880 STORIES AS TO WHAT THEY HEARD ON 8298 05:29:04,880 --> 05:29:07,320 THE PANEL. DISCUSSION AND AGAIN 8299 05:29:07,320 --> 05:29:09,120 WE WILL SHARE THOSE WITH THE 8300 05:29:09,120 --> 05:29:12,520 PANELISTS AND WITH THE AGENCY 8301 05:29:12,520 --> 05:29:14,240 MEMBERS OFFLINE. I DO WANT TO 8302 05:29:14,240 --> 05:29:17,360 ACKNOWLEDGE THAT FOR THE PUBLIC 8303 05:29:17,360 --> 05:29:22,360 >> THANK YOU VERY MUCH. 8304 05:29:22,360 --> 05:29:24,080 >> YOU JUST WENT ON MUTE. 8305 05:29:24,080 --> 05:29:26,000 >> THANK YOU, TRISH. IT IS LATE 8306 05:29:26,000 --> 05:29:29,960 IN THE DAY. I JUST ALSO WANTED 8307 05:29:29,960 --> 05:29:31,040 TO TELL QUESTIONS AND COMMENTS 8308 05:29:31,040 --> 05:29:32,960 FROM PUBLIC AND WANTED TO 8309 05:29:32,960 --> 05:29:36,040 MENTION WE HAD SEVERAL COMMENTS 8310 05:29:36,040 --> 05:29:39,160 TO THANK PARTICIPANTS, TO THANK 8311 05:29:39,160 --> 05:29:43,560 PANEL AND EACH SPEAKERS TODAY. 8312 05:29:43,560 --> 05:29:45,320 TO SAY THANK YOU TO PARENTS WHO 8313 05:29:45,320 --> 05:29:49,040 PARENTS PATED TODAY AND SAYING 8314 05:29:49,040 --> 05:29:54,040 IT HAS BEEN VERY, VERY HELPFUL. 8315 05:29:54,040 --> 05:29:55,640 SEVERAL. WE WILL SHARE COMMENTS 8316 05:29:55,640 --> 05:29:57,280 WITH SPEAKERS AND WITH MEMBERS. 8317 05:29:57,280 --> 05:29:59,080 ALL RIGHT. 8318 05:29:59,080 --> 05:30:02,920 >> TATIANA, THIS IS AMANDA, I 8319 05:30:02,920 --> 05:30:06,040 JUST -- I WANT TO ECHO THE 8320 05:30:06,040 --> 05:30:07,720 SENTIMENTS OF THE PUBLIC TO SAY 8321 05:30:07,720 --> 05:30:10,120 THANK YOU TO THE PANEL MEMBERS 8322 05:30:10,120 --> 05:30:11,400 ESPECIALLY THOSE WITH LIVED 8323 05:30:11,400 --> 05:30:12,600 EXPERIENCE AND PARENTS OF THOSE 8324 05:30:12,600 --> 05:30:16,920 WITH LIVED EXPERIENCE. THAT IS 8325 05:30:16,920 --> 05:30:18,920 SO IT WAS REALLY MEANINGFUL AND 8326 05:30:18,920 --> 05:30:20,120 INFORMATIVE AND I REALLY 8327 05:30:20,120 --> 05:30:21,920 APPRECIATE YOUR WILLINGNESS TO 8328 05:30:21,920 --> 05:30:28,000 SHARE YOUR EXPERIENCES WITH US. 8329 05:30:28,000 --> 05:30:31,440 JUST A NOTE, I HAVE A SON WITH A 8330 05:30:31,440 --> 05:30:34,000 SERIOUS MENTAL ILLNESS AND I SEE 8331 05:30:34,000 --> 05:30:37,480 A LOT OF PARALLELS TO THINGS YOU 8332 05:30:37,480 --> 05:30:39,200 ARE EXPERIENCING: AND I WAS 8333 05:30:39,200 --> 05:30:41,040 JUST TRYING TO REFLECT ON THAT, 8334 05:30:41,040 --> 05:30:43,600 WHY THAT IS. I THINK IN PART IT 8335 05:30:43,600 --> 05:30:45,960 IS BECAUSE IT IS OFTEN AN 8336 05:30:45,960 --> 05:30:49,520 INVISIBLE DISABILITY. AND SO I 8337 05:30:49,520 --> 05:30:51,320 BRING THAT UP ONLY BECAUSE I 8338 05:30:51,320 --> 05:30:55,640 THINK THAT THERE IS SOMETHING TO 8339 05:30:55,640 --> 05:30:56,920 LEARN MAYBE TOGETHER ACROSS 8340 05:30:56,920 --> 05:31:00,120 DIFFERENT POPULATIONS, TO 8341 05:31:00,120 --> 05:31:01,760 UNDERSTAND HOW DO WE ADDRESS 8342 05:31:01,760 --> 05:31:04,880 INVISIBLE DISABILITIES MORE 8343 05:31:04,880 --> 05:31:06,600 CLEARLY AND GET THEM THE 8344 05:31:06,600 --> 05:31:09,480 ATTENTION THEY DESERVE AND HAVE 8345 05:31:09,480 --> 05:31:11,560 PEOPLE WHO REALLY DON'T 8346 05:31:11,560 --> 05:31:12,600 UNDERSTAND THEM, LEARN TO 8347 05:31:12,600 --> 05:31:14,400 UNDERSTAND THEM. MY OTHER 8348 05:31:14,400 --> 05:31:21,440 COMMENT WAS, IS, THAT NIDLER HAS 8349 05:31:21,440 --> 05:31:23,160 FORECASTED A UPCOMING GRANT 8350 05:31:23,160 --> 05:31:26,880 OPPORTUNITY FOR PEOPLE WHO ARE 8351 05:31:26,880 --> 05:31:28,560 RESEARCHERS AND THE TITLE OF IT, 8352 05:31:28,560 --> 05:31:30,080 I GOT TO READ IT TO MAKE SURE I 8353 05:31:30,080 --> 05:31:32,960 GET IT RIGHT. BUT THE TITLE IS 8354 05:31:32,960 --> 05:31:35,160 IMPROVING METHODS FOR CONDUCTING 8355 05:31:35,160 --> 05:31:37,040 RESEARCH WITH PEOPLE, WITH 8356 05:31:37,040 --> 05:31:38,760 COGNITIVE DISABILITIES AND 8357 05:31:38,760 --> 05:31:40,040 VIRTUAL ENVIRONMENTS. AND THIS 8358 05:31:40,040 --> 05:31:43,600 IS REALLY COMING OUT OF WHAT -- 8359 05:31:43,600 --> 05:31:45,040 WHERE WE HAVE SEEN RESEARCHERS 8360 05:31:45,040 --> 05:31:49,480 HAVING TO PIVOT TO COLLECT DATA 8361 05:31:49,480 --> 05:31:50,680 REMOTELY, AND NOT ALWAYS BEING 8362 05:31:50,680 --> 05:31:54,520 ABLE TO INCLUDE PEOPLE AS WE 8363 05:31:54,520 --> 05:31:56,280 KNOW, WITH COGNITIVE 8364 05:31:56,280 --> 05:31:58,480 DISABILITIES VERY WELL. SO WE 8365 05:31:58,480 --> 05:32:03,520 WANT TO ENCOURAGE PEOPLE TO 8366 05:32:03,520 --> 05:32:05,400 DEVELOP METHODS AND TEST THEM 8367 05:32:05,400 --> 05:32:09,760 FOR THEIR RIGOR AND 8368 05:32:09,760 --> 05:32:10,640 EFFECTIVENESS AND INCLUDING 8369 05:32:10,640 --> 05:32:12,760 PEOPLE BEYOND JUST THOSE WITH 8370 05:32:12,760 --> 05:32:15,160 MILD COGNITIVE DISABILITIES BUT 8371 05:32:15,160 --> 05:32:16,840 SO THAT WE CAN MAKE SURE THAT 8372 05:32:16,840 --> 05:32:19,920 EVERYBODY IS INCLUDED. THAT 8373 05:32:19,920 --> 05:32:24,560 SHOULD BE PUBLISHED ANY DAY NOW 8374 05:32:24,560 --> 05:32:27,560 IT WAS FORECAST TO BE OUT ON THE 8375 05:32:27,560 --> 05:32:28,960 THIRD I THINK BUT I THINK IT IS 8376 05:32:28,960 --> 05:32:30,840 A WONDERFUL OPPORTUNITY TO 8377 05:32:30,840 --> 05:32:33,360 ADDRESS THE NEEDS OF THE 8378 05:32:33,360 --> 05:32:37,760 POPULATION OF PEOPLE WITH FASD. 8379 05:32:37,760 --> 05:32:40,000 IT IS CERTAINLY OPEN TO THAT, 8380 05:32:40,000 --> 05:32:43,000 THAT SPECIFIC POPULATION AS A 8381 05:32:43,000 --> 05:32:44,480 GROUP SO ENCOURAGE PEOPLE TO 8382 05:32:44,480 --> 05:32:47,800 APPLY. THANK YOU. 8383 05:32:47,800 --> 05:32:49,600 >> THANK YOU, AMANDA FOR YOUR 8384 05:32:49,600 --> 05:32:55,280 COMMENT. THANK YOU. ALL RIGHT 8385 05:32:55,280 --> 05:32:56,200 TRISH POWELL I CAN SEE YOUR 8386 05:32:56,200 --> 05:32:57,440 HAND. GO AHEAD. 8387 05:32:57,440 --> 05:32:59,680 >> PEOPLE ARE SPARKING ALL KINDS 8388 05:32:59,680 --> 05:33:00,680 OF THOUGHTS JUST BUILDING OFF 8389 05:33:00,680 --> 05:33:02,560 ONE THING AMANDA JUST SAID, IT 8390 05:33:02,560 --> 05:33:05,320 GOES BACK TO SOMETHING THAT BOTH 8391 05:33:05,320 --> 05:33:07,320 KAT AND JAN EMPHASIZED. THIS 8392 05:33:07,320 --> 05:33:10,360 IDEA OF INVISIBLE DISABILITIES. 8393 05:33:10,360 --> 05:33:12,480 AND IT IS EVEN HARDER THAN 8394 05:33:12,480 --> 05:33:14,360 WHETHER YOU SEE IT OR NOT 8395 05:33:14,360 --> 05:33:16,920 BECAUSE AS JAN AND KAT POINTED 8396 05:33:16,920 --> 05:33:19,120 OUT ON ANY GIVEN DAY IT CAN LOOK 8397 05:33:19,120 --> 05:33:20,400 DIFFERENT. AND I THINK THAT'S 8398 05:33:20,400 --> 05:33:24,440 OOH SOMETHING THAT SOMETIMES WE 8399 05:33:24,440 --> 05:33:26,040 IN THE HEALTHCARE SYSTEM, AND 8400 05:33:26,040 --> 05:33:28,880 SOCIETY AT LARGE DISMISS. THAT 8401 05:33:28,880 --> 05:33:30,560 IF ONE DAY YOU ARE CAPABLE OF 8402 05:33:30,560 --> 05:33:31,680 DOING SOMETHING AND ON THE NEXT 8403 05:33:31,680 --> 05:33:33,160 YOU ARE NOT. THERE'S NOT AN 8404 05:33:33,160 --> 05:33:35,800 UNDERSTANDING OF THAT. SO I 8405 05:33:35,800 --> 05:33:36,800 THINK THAT IS SOMETHING TO KEEP 8406 05:33:36,800 --> 05:33:38,480 IN MIND AS WELL ON AS WE MOVE 8407 05:33:38,480 --> 05:33:40,680 FORWARD. 8408 05:33:40,680 --> 05:33:48,480 >> IF I CAN, RESPONSE TO THAT. 8409 05:33:48,480 --> 05:33:50,840 IT DOES LOOK DIFFERENT EVERY 8410 05:33:50,840 --> 05:33:57,840 SINGLE DAY. BUT I WANT TO ALSO 8411 05:33:57,840 --> 05:34:03,040 KIND OF CHALLENGE THAT IN A WAY 8412 05:34:03,040 --> 05:34:05,880 FASD ISN'T -- IT IS BUT IT ISN'T 8413 05:34:05,880 --> 05:34:07,520 INVISIBLE BECAUSE THOSE WHO ARE 8414 05:34:07,520 --> 05:34:08,400 AREN'T IT EVERY DAY, THEY SEE 8415 05:34:08,400 --> 05:34:13,120 IT. THOSE WHO WORK WITH SOMEONE 8416 05:34:13,120 --> 05:34:17,360 WHO HAS FASD, THEY ARE 8417 05:34:17,360 --> 05:34:18,160 EXPERIENCING FASD THROUGH THAT 8418 05:34:18,160 --> 05:34:28,720 PERSON. SO IT IS BUT IT ISN'T. 8419 05:34:28,720 --> 05:34:30,160 JUST I LIKE TO CHALLENGE 8420 05:34:30,160 --> 05:34:34,360 PEOPLE'S THINKING. 8421 05:34:34,360 --> 05:34:35,400 >> THAT IS WHY YOU ARE HERE. 8422 05:34:35,400 --> 05:34:36,120 THANK YOU. 8423 05:34:36,120 --> 05:34:38,480 >> I'M GOING TO -- THIS IS JUST 8424 05:34:38,480 --> 05:34:41,920 A REALLY SMALL GROUP LEFT HERE, 8425 05:34:41,920 --> 05:34:48,160 I THINK I'M GOING TO SAY -- 8426 05:34:48,160 --> 05:34:51,440 EXPRESS A PROBLEM WITH ONE OF 8427 05:34:51,440 --> 05:34:54,040 THE REASONS WHY SOME OF THE 8428 05:34:54,040 --> 05:34:55,840 COMMUNITIES HAVE NOT WORKED WELL 8429 05:34:55,840 --> 05:34:57,560 WITH THE FASD COMMUNITY, I WILL 8430 05:34:57,560 --> 05:34:59,560 SPEAK TO A DIRECT QUOTE, MADE 8431 05:34:59,560 --> 05:35:02,280 QUITE A FEW YEARS, SO I CAN 8432 05:35:02,280 --> 05:35:04,320 SAFELY SAY IT, WHEN IT WAS 8433 05:35:04,320 --> 05:35:06,520 STRONGLY ADVISED THAT THE FASD 8434 05:35:06,520 --> 05:35:09,680 COMMUNITY AUTISM COMMUNITY WORK 8435 05:35:09,680 --> 05:35:10,880 TOGETHER HERE AND THE DIRECT 8436 05:35:10,880 --> 05:35:11,560 DOTE QUOTE FROM THE PERSON IN 8437 05:35:11,560 --> 05:35:13,880 CHARGE OF THE AUTISM COMMUNITY 8438 05:35:13,880 --> 05:35:15,720 IS WHEN THEY SAID NO, THEY SAID 8439 05:35:15,720 --> 05:35:18,120 AFTER ALL, WE DIDN'T CAUSE THIS 8440 05:35:18,120 --> 05:35:19,760 AND IT GOES BACK TO THAT STIGMA 8441 05:35:19,760 --> 05:35:23,840 THING. THAT IS A PERVASIVE PIECE 8442 05:35:23,840 --> 05:35:25,120 OUT THERE THAT WE STILL SEE ALL 8443 05:35:25,120 --> 05:35:30,040 THE TIME. AND WHEN THERE IS A 8444 05:35:30,040 --> 05:35:33,320 KNOWN CAUSE THAT IS, QUOTE, 100% 8445 05:35:33,320 --> 05:35:35,640 PREVENTABLE A TERM PERSONALLY I 8446 05:35:35,640 --> 05:35:39,200 DISLIKE INTENSITY, THERE IS A 8447 05:35:39,200 --> 05:35:41,080 PROBLEM WITH HOW PEOPLE INTERACT 8448 05:35:41,080 --> 05:35:43,960 WITH THIS GROUP. WITH THE 8449 05:35:43,960 --> 05:35:45,200 FAMILIES, AND THE INDIVIDUALS. 8450 05:35:45,200 --> 05:35:48,720 IT GOES BACK TO THAT 100% 8451 05:35:48,720 --> 05:35:50,720 PREVENTABLE CAUSED BY EQUALS 8452 05:35:50,720 --> 05:35:53,480 LESS THAN YOU DID IT SO YOU 8453 05:35:53,480 --> 05:35:56,680 GUYS. IT IS KIND OF THE VISIT 8454 05:35:56,680 --> 05:35:58,560 THE SINS OF THE MOTHER ON THE 8455 05:35:58,560 --> 05:35:59,760 CHILD GETS TWISTED AND TURNED 8456 05:35:59,760 --> 05:36:01,880 AND BECOMES A MUCH BIGGER ISSUE 8457 05:36:01,880 --> 05:36:04,800 THAN JUST IT BEING INVISIBLE. SO 8458 05:36:04,800 --> 05:36:05,880 JUST SOMETHING TO PUT OUT THERE 8459 05:36:05,880 --> 05:36:08,880 FOR THE THOUGHT, BECAUSE I 8460 05:36:08,880 --> 05:36:12,120 AGREE, THERE IS SIGNIFICANT -- 8461 05:36:12,120 --> 05:36:14,800 JUSTIN INDICATED HE HAS BIPOLAR 8462 05:36:14,800 --> 05:36:16,000 DISORDER AND HALF DOZEN OTHER 8463 05:36:16,000 --> 05:36:18,320 THINGS AND LITERALLY EVERY ADULT 8464 05:36:18,320 --> 05:36:21,080 I KNOW HAS ANXIETY AND LARGE 8465 05:36:21,080 --> 05:36:22,720 NUMBERS HAVE DEPRESSI DEPRESSIO 8466 05:36:22,720 --> 05:36:23,520 SIGNIFICANT MENTAL HEALTH STUFF 8467 05:36:23,520 --> 05:36:25,200 BUT WHEN YOU TRY TO HAVE 8468 05:36:25,200 --> 05:36:28,320 EVERYBODY WORK TOGETHER, THEY 8469 05:36:28,320 --> 05:36:29,200 JUST SOMETHING CHANGES AS SOON 8470 05:36:29,200 --> 05:36:31,960 AS PEOPLE HEAR THE WORDS FASD. 8471 05:36:31,960 --> 05:36:34,400 IT IS STILL HAPPENING. IT IS 8472 05:36:34,400 --> 05:36:37,000 NOT GOING AWAY. I WOULD JUST 8473 05:36:37,000 --> 05:36:39,080 REALLY LIKE US ALL TO PUT A 8474 05:36:39,080 --> 05:36:40,320 BUNCH OF PEOPLE IN A ROOM, LOCK 8475 05:36:40,320 --> 05:36:42,560 THE DOORS AND SAY LET'S FIGURE 8476 05:36:42,560 --> 05:36:43,920 OUT NOBODY LEAVES UNTIL WE COME 8477 05:36:43,920 --> 05:36:45,680 UP WITH A BETTER WAY TO ADDRESS 8478 05:36:45,680 --> 05:36:48,280 ALL OF THIS. BECAUSE WE HAVEN'T 8479 05:36:48,280 --> 05:36:51,280 DONE A VERY GOOD JOB. WE MEAN 8480 05:36:51,280 --> 05:36:53,080 WELL, EVERYBODY DOES BUT WE 8481 05:36:53,080 --> 05:36:55,560 HAVEN'T DONE IT. SO WHAT ARE WE 8482 05:36:55,560 --> 05:36:57,560 DOING WRONG? WHAT DO WE NEED TO 8483 05:36:57,560 --> 05:36:59,560 CHANGE? HOW DO WE DO IT BETTER? 8484 05:36:59,560 --> 05:37:01,120 NOT EVEN RIGHT, HOW DO WE JUST 8485 05:37:01,120 --> 05:37:02,520 DO IT BETTER SO WE EVENTUALLY 8486 05:37:02,520 --> 05:37:06,240 GET TO RIGHT? I WILL CUT OUT 8487 05:37:06,240 --> 05:37:07,560 BECAUSE IT IS JUST ONE OF MY 8488 05:37:07,560 --> 05:37:08,600 SOAP BOX. 8489 05:37:08,600 --> 05:37:11,600 >> THANK YOU, GOOD POINT. I 8490 05:37:11,600 --> 05:37:13,200 COMPLETELY AGREE WE NEED TO SEE 8491 05:37:13,200 --> 05:37:14,120 HOW WE HAVE BEEN DOING THIS AND 8492 05:37:14,120 --> 05:37:15,480 WHAT WE NEED TO DO DIFFERENTLY 8493 05:37:15,480 --> 05:37:19,840 AND MORE EFFECTIVELY. TRACY. 8494 05:37:19,840 --> 05:37:23,040 YOUR TURN. 8495 05:37:23,040 --> 05:37:25,560 >> MY COMMENT PICKS UP ON JAN'S 8496 05:37:25,560 --> 05:37:28,280 A LITTLE BIT AND ALSO ON SOME 8497 05:37:28,280 --> 05:37:30,320 CONVERSATION EARLIER THIS 8498 05:37:30,320 --> 05:37:33,120 MORNING. I HEARD SEVERAL PEOPLE 8499 05:37:33,120 --> 05:37:36,880 COMMENT EARLIER THIS MORNING 8500 05:37:36,880 --> 05:37:41,280 ABOUT HOW THERE IS A NEED FOR 8501 05:37:41,280 --> 05:37:43,920 FAS SPECIFIC EDUCATION, FAS 8502 05:37:43,920 --> 05:37:49,840 SPECIFIC RESOURCES, FAS SPECIFIC 8503 05:37:49,840 --> 05:37:55,880 TRAINING. AND HOW THAT PROGRAM 8504 05:37:55,880 --> 05:38:00,200 THAT WERE MORE BROADLY TARGETED 8505 05:38:00,200 --> 05:38:01,440 TOWARDS WHETHER THEY HAPPEN TO 8506 05:38:01,440 --> 05:38:05,280 BE COGNITIVE, DISABILITIES OR 8507 05:38:05,280 --> 05:38:08,520 MENTAL HEALTH ISSUES. WEREN'T 8508 05:38:08,520 --> 05:38:10,720 MEETING PEOPLE'S NEEDS. I GUESS 8509 05:38:10,720 --> 05:38:12,960 MY COMMENT HERE IS GOING TO BE 8510 05:38:12,960 --> 05:38:15,840 LESS WEARING MY NIH HAT AND MORE 8511 05:38:15,840 --> 05:38:18,080 WEARING MY FORMER PRIMARY CARE 8512 05:38:18,080 --> 05:38:20,200 PROVIDER HAT. I DON'T THINK 8513 05:38:20,200 --> 05:38:22,240 IT'S NECESSARILY AN EITHER/OR 8514 05:38:22,240 --> 05:38:24,000 CHOICE. I THINK THAT THERE IS 8515 05:38:24,000 --> 05:38:28,160 VALUE TO BOTH AND I GUESS MY 8516 05:38:28,160 --> 05:38:34,160 PLEA HERE IS THAT WHILE WE DO 8517 05:38:34,160 --> 05:38:37,720 WORK ON FAS SPECIFIC EDUCATIONAL 8518 05:38:37,720 --> 05:38:40,240 PROGRAMS OR OUTREACH, THAT WE 8519 05:38:40,240 --> 05:38:42,440 DON'T LOSE SIGHT OF THE VALUE OF 8520 05:38:42,440 --> 05:38:45,640 INCORPORATING FAS INTO PERHAPS 8521 05:38:45,640 --> 05:38:49,800 LARGER OR MORE BROADLY BASED 8522 05:38:49,800 --> 05:38:52,680 PROGRAMS. BECAUSE I'M ALSO 8523 05:38:52,680 --> 05:38:53,400 REFLECTING ONE OF THE COMMENTS 8524 05:38:53,400 --> 05:38:55,360 IN THE CHAT THIS MORNING ABOUT 8525 05:38:55,360 --> 05:38:56,840 HOW PEOPLE WERE SAYING THEY WERE 8526 05:38:56,840 --> 05:38:59,600 HAVING A HARD TIME GETTING 8527 05:38:59,600 --> 05:39:02,360 PRIMARY CARE PROVIDERS TO ENROLL 8528 05:39:02,360 --> 05:39:04,880 OR PARTICIPATE IN FAS SPECIFIC 8529 05:39:04,880 --> 05:39:08,320 EFFORTS. I THINK PRIMARY CARE 8530 05:39:08,320 --> 05:39:10,400 PROVIDERS NOW AND MANY OTHER 8531 05:39:10,400 --> 05:39:13,720 TYPES OF CLINICAL PROVIDERS ARE 8532 05:39:13,720 --> 05:39:15,320 OVEREXTENDED AND UNDERRESOURCED 8533 05:39:15,320 --> 05:39:18,560 I HI THE MORE WE CAN ALSO 8534 05:39:18,560 --> 05:39:24,720 INCORPORATE FAS INFORMATION INTO 8535 05:39:24,720 --> 05:39:28,520 BIGGER PROGRAMS IN ADDITION TO 8536 05:39:28,520 --> 05:39:29,640 FAS EFFORTS, THERE'S BENEFITS TO 8537 05:39:29,640 --> 05:39:31,280 EVERYBODY. 8538 05:39:31,280 --> 05:39:35,880 >> THANK YOU, THANK YOU, TRACY. 8539 05:39:35,880 --> 05:39:38,080 WELL TAKEN POINT. WE HAVE 8540 05:39:38,080 --> 05:39:39,720 DISCUSSION, WE NEED TO CONTINUE 8541 05:39:39,720 --> 05:39:42,800 TO SEE HOW WE CAN INTEGRATE FASD 8542 05:39:42,800 --> 05:39:46,240 WITH A LITTLE OTHER DISABILITIES 8543 05:39:46,240 --> 05:39:47,120 BUT AT THE SAME TIME WE DO 8544 05:39:47,120 --> 05:39:49,560 UNDERSTAND. AND THERE IS 8545 05:39:49,560 --> 05:39:51,160 ACTUALLY THIS APPROACH PERSON 8546 05:39:51,160 --> 05:39:55,760 CENTERED PRACTICE WHICH HAS BEEN 8547 05:39:55,760 --> 05:39:57,240 EMPHASIZED BY ADMINISTRATION 8548 05:39:57,240 --> 05:40:01,000 TORR COMMUNITY LIVING, WE 8549 05:40:01,000 --> 05:40:06,040 DISCUSS THIS WITH THIS COMMUNITY 8550 05:40:06,040 --> 05:40:07,040 REPRESENTATIVE BUT THE MODEL HAS 8551 05:40:07,040 --> 05:40:08,680 SPOKEN ABOUT THAT. IT IS EXACTLY 8552 05:40:08,680 --> 05:40:10,360 WHAT WE ARE LOOKING AT. AND WE 8553 05:40:10,360 --> 05:40:12,160 JUST NEED TO BE SURE IT IS 8554 05:40:12,160 --> 05:40:15,360 REALLY IMPLEMENTED. WE HAVE TWO 8555 05:40:15,360 --> 05:40:19,880 HANDS. I KNOW BILL DUNTY HAS HAD 8556 05:40:19,880 --> 05:40:24,480 HAND THEN WE HAVE JON. BILL, 8557 05:40:24,480 --> 05:40:24,760 YOUR ROLE. 8558 05:40:24,760 --> 05:40:27,320 >> I WAS JUST GOING TO READ TWO 8559 05:40:27,320 --> 05:40:28,440 COMMENTS THAT CAME IN FROM THE 8560 05:40:28,440 --> 05:40:33,040 PUBLIC. WE MAY, MAY NOT NEED TO 8561 05:40:33,040 --> 05:40:34,600 DISCUSS THEM BUT I DO JUST WANT 8562 05:40:34,600 --> 05:40:37,480 TO MAKE THEM PART OF THE RECORD 8563 05:40:37,480 --> 05:40:41,240 IT WAS COMMENT FROM A RESEARCH 8564 05:40:41,240 --> 05:40:42,600 PERSPECTIVE, IT WAS IMPERATIVE 8565 05:40:42,600 --> 05:40:45,480 TO TRANSLATE FINDINGS INTO LAY 8566 05:40:45,480 --> 05:40:48,040 LANGUAGE. I THINK WE WOULD ALL 8567 05:40:48,040 --> 05:40:52,800 AGREE ON THAT. AND THEN ALSO 8568 05:40:52,800 --> 05:40:56,480 ANOTHER COMMENT FASD IS A SOCIAL 8569 05:40:56,480 --> 05:40:59,360 JUSTICE ISSUE. BECAUSE IT IS NOT 8570 05:40:59,360 --> 05:41:01,520 CONSIDERED UNDER U.S. LAW. AS A 8571 05:41:01,520 --> 05:41:04,240 DISABILITY. OF I WANT TO MAKE 8572 05:41:04,240 --> 05:41:07,240 THAT COMMENT. 8573 05:41:07,240 --> 05:41:11,200 >> JON. 8574 05:41:11,200 --> 05:41:15,480 >> I AM PRIMARY PREVENTION GUY 8575 05:41:15,480 --> 05:41:19,880 HERE FROM SAMHSA. I HAVE BEEN IN 8576 05:41:19,880 --> 05:41:26,360 THIS FIELD NOW SINCE 2008. WHEN 8577 05:41:26,360 --> 05:41:27,480 I LISTEN TO ALL THE THINGS WE 8578 05:41:27,480 --> 05:41:30,280 ARE DOING, AND THE RESISTANCE 8579 05:41:30,280 --> 05:41:36,520 THAT WE GET FROM BEHAVIORAL 8580 05:41:36,520 --> 05:41:38,280 HEALTH AND COMMUNITY ABOUT FASD 8581 05:41:38,280 --> 05:41:40,160 AND THE STIGMA AROUND WHY A 8582 05:41:40,160 --> 05:41:43,360 WOMAN WOULD CHOOSE TO DRINK 8583 05:41:43,360 --> 05:41:44,280 WHILE PREGNANT. I THINK THAT ONE 8584 05:41:44,280 --> 05:41:46,080 OF THE MESSAGES THAT HAS TO GO 8585 05:41:46,080 --> 05:41:50,240 OUT THERE IS THAT WE ARE DOING 8586 05:41:50,240 --> 05:41:52,120 SOMETHING ABOUT DRINKING WHILE 8587 05:41:52,120 --> 05:41:53,480 PREGNANT. THERE ARE PROGRAMS, 8588 05:41:53,480 --> 05:41:57,520 THINGS OUT THERE TO WARN THEM. 8589 05:41:57,520 --> 05:42:01,120 AND SAMHSA IN PREVENTION, I 8590 05:42:01,120 --> 05:42:02,640 BROUGHT THIS UP BEFORE WHERE WE 8591 05:42:02,640 --> 05:42:05,160 COULD HAVE THEM ONE OF THE 8592 05:42:05,160 --> 05:42:06,840 QUESTIONS THERE FOR IMMUNITIES 8593 05:42:06,840 --> 05:42:08,200 AROUND -- COMMUNITIES AROUND 8594 05:42:08,200 --> 05:42:12,320 UNDERAGE DRINKING AND DATE RAPE 8595 05:42:12,320 --> 05:42:15,800 AND SCHOOL SKIPPING SCHOOL AND 8596 05:42:15,800 --> 05:42:18,040 PREGNANCIES, AND THE LIKE. BUT 8597 05:42:18,040 --> 05:42:22,240 IT HAS EVEN BEEN DIFFICULT FOR 8598 05:42:22,240 --> 05:42:26,680 CSAB TO GRASP THE IDEA OF HAVING 8599 05:42:26,680 --> 05:42:30,680 FASD AS A RISK FACTOR IN OUR 8600 05:42:30,680 --> 05:42:33,480 UNDERAGE PROGRAMS OR UNDERAGE 8601 05:42:33,480 --> 05:42:36,040 YOUTH FROM 12 TO 25-YEAR-OLD. 8602 05:42:36,040 --> 05:42:38,160 THERE IS NO WARNING. ABSOLUTELY 8603 05:42:38,160 --> 05:42:39,640 NOTHING ABOUT DRINKING AND BEING 8604 05:42:39,640 --> 05:42:41,840 PREGNANT. SO WHEN PUBLIC SEES 8605 05:42:41,840 --> 05:42:44,440 ALL THESE THINGS THAT WE ARE 8606 05:42:44,440 --> 05:42:46,680 DOING ABOUT FASD IN MY OPINION 8607 05:42:46,680 --> 05:42:48,160 AROUND TREATMENT THEY ARE ASKING 8608 05:42:48,160 --> 05:42:51,360 WELL, YOU DON'T WANT TO BLAME 8609 05:42:51,360 --> 05:42:53,480 THE PERSON FOR DRINKING WHILE 8610 05:42:53,480 --> 05:42:54,800 SHE WAS PREGNANT. SHE DIDN'T 8611 05:42:54,800 --> 05:42:56,680 KNOW BETTER. WE KNOW THAT NO NO. 8612 05:42:56,680 --> 05:42:58,280 BUT THEY ALSO THINK IN THEIR 8613 05:42:58,280 --> 05:43:00,280 HEADS, WELL, THAT'S NOT ALL I 8614 05:43:00,280 --> 05:43:02,080 WANT TO HEAR, I WANT TO HEAR 8615 05:43:02,080 --> 05:43:03,120 WHAT ARE YOU GOING TO DO ABOUT 8616 05:43:03,120 --> 05:43:05,000 WHAT HAPPENS IN THE FUTURE WHEN 8617 05:43:05,000 --> 05:43:06,560 PEOPLE ARE DRINKING WHILE 8618 05:43:06,560 --> 05:43:11,720 PREGNANT? AND WE HAVE VERY 8619 05:43:11,720 --> 05:43:14,080 LITTLE AROUND THAT. WE DON'T GET 8620 05:43:14,080 --> 05:43:18,000 INTO THAT VERY MUCH. AT LEAST 8621 05:43:18,000 --> 05:43:19,600 NOT IN (INAUDIBLE) AND I 8622 05:43:19,600 --> 05:43:21,000 UNDERSTAND WHY. BUT COMING FROM 8623 05:43:21,000 --> 05:43:23,240 SAMHSA AND REPRESENTING CSAB I 8624 05:43:23,240 --> 05:43:26,120 HAVE TO BRING THAT PERSPECTIVE 8625 05:43:26,120 --> 05:43:29,400 UP AROUND PRIMARY PREVENTION AND 8626 05:43:29,400 --> 05:43:31,160 WHAT IT IS TO -- WARNINGS TO 8627 05:43:31,160 --> 05:43:34,280 WOMEN AND PHYSICIANS ABOUT 8628 05:43:34,280 --> 05:43:37,200 DISCUSSIONS WITH WOMEN WHEN THEY 8629 05:43:37,200 --> 05:43:38,800 ARE IN FOR PRIMARY CARE AROUND 8630 05:43:38,800 --> 05:43:39,920 ALCOHOL AND DRINKING. THERE HAVE 8631 05:43:39,920 --> 05:43:41,280 BEEN SOME ATTEMPTS AROUND IT BUT 8632 05:43:41,280 --> 05:43:43,360 IT REALLY HASN'T HAPPENED. SO 8633 05:43:43,360 --> 05:43:45,480 WHEN WE TALK ABOUT PREVENTION 8634 05:43:45,480 --> 05:43:46,960 EARLIER I WAS THINKING WELL, 8635 05:43:46,960 --> 05:43:49,160 WHAT ARE THEY TRYING TO PREVENT 8636 05:43:49,160 --> 05:43:50,400 WHAT IS THE DIFFERENCE BETWEEN 8637 05:43:50,400 --> 05:43:51,720 PREVENTION AND INTERVENTION? 8638 05:43:51,720 --> 05:43:53,400 WELL, YOU HAVE PRIMARY 8639 05:43:53,400 --> 05:43:56,280 PREVENTION, SECONDARY 8640 05:43:56,280 --> 05:43:57,520 PREVENTION, ALL THREE YOU CAN 8641 05:43:57,520 --> 05:43:59,720 HAVE AN INTERVENTION BUT TO 8642 05:43:59,720 --> 05:44:02,320 PREVENT PRIMARILY IS TO PREVENT 8643 05:44:02,320 --> 05:44:03,560 SOMETHING FROM OCCURRING IN THE 8644 05:44:03,560 --> 05:44:07,720 FIRST PLACE. I THINK WE ALSO 8645 05:44:07,720 --> 05:44:09,520 NEED TO ALSO UNDERSTAND THAT IS 8646 05:44:09,520 --> 05:44:11,000 A VERY IMPORTANT MESSAGE FOR 8647 05:44:11,000 --> 05:44:15,480 THIS GROUP TO CARRY. BECAUSE IT 8648 05:44:15,480 --> 05:44:17,920 DISPELS SOME OF THE STIGMA AND 8649 05:44:17,920 --> 05:44:19,040 MAKES PEOPLE UNDERSTAND THERE IS 8650 05:44:19,040 --> 05:44:21,600 ALSO AN EFFORT TO STOP THE 8651 05:44:21,600 --> 05:44:22,960 NUMBER OF ALCOHOL EXPOSED 8652 05:44:22,960 --> 05:44:25,400 PREGNANCIES IN THE FUTURE. 8653 05:44:25,400 --> 05:44:26,200 THAT'S ALL I HAVE TO SAY. 8654 05:44:26,200 --> 05:44:32,040 >> THANK YOU. THIS MEETING 8655 05:44:32,040 --> 05:44:33,600 FOCUS MORE ON SERVICES AND 8656 05:44:33,600 --> 05:44:42,280 SUPPORTS FOR PEOPLE WI BUT WE DO 8657 05:44:42,280 --> 05:44:44,160 UNDERSTAND IT IS VERY IMPORTANT 8658 05:44:44,160 --> 05:44:45,200 AND WILL GET BACK TO YOU. WE 8659 05:44:45,200 --> 05:44:46,760 HAVE A COUPLE OF COMMENTS BEFORE 8660 05:44:46,760 --> 05:44:52,400 WE FINISH. I ALSO WANT TO GIVE 8661 05:44:52,400 --> 05:44:54,080 TIME TO DR. TRISH POWELL TO MAKE 8662 05:44:54,080 --> 05:44:57,600 CONCLUSION. BEFORE GO TO THAT I 8663 05:44:57,600 --> 05:45:02,360 WANT TO ALSO SAY HAVING THIS 8664 05:45:02,360 --> 05:45:04,680 MEETING AND BEING ABLE TO HAVE 8665 05:45:04,680 --> 05:45:09,240 PRIVILEGE TO HEAR FROM EFFORTS 8666 05:45:09,240 --> 05:45:11,080 IS IT TAKES A SIGNIFICANT 8667 05:45:11,080 --> 05:45:15,640 EFFORT. AND THIS WOULD NOT BE 8668 05:45:15,640 --> 05:45:18,400 POSSIBLE WITHOUT HELP. I THINK 8669 05:45:18,400 --> 05:45:19,760 WE ALL RECOGNIZE IT AND IT IS 8670 05:45:19,760 --> 05:45:23,160 EASY TO FORGET BUT IT IS REALLY 8671 05:45:23,160 --> 05:45:24,840 VERY IMPORTANT POINT. WHATEVER 8672 05:45:24,840 --> 05:45:28,840 WE DO WITH OUR PROGRAMS TO IN 8673 05:45:28,840 --> 05:45:31,800 VOLVE COMMUNITY THE ENGAGED RESEARCH, 8674 05:45:31,800 --> 05:45:34,000 AND PRACTICE, WE NEED TO 8675 05:45:34,000 --> 05:45:34,720 UNDERSTAND IT WILL TAKE MORE 8676 05:45:34,720 --> 05:45:38,880 EFFORT. IT WILL. IT IS NOT AS 8677 05:45:38,880 --> 05:45:41,800 SIMPLE AS WE CAN TELL IT. IT IS 8678 05:45:41,800 --> 05:45:43,840 SOMETHING WHICH WE HAVE TO DO. 8679 05:45:43,840 --> 05:45:49,000 AND BECAUSE AFTER THAT WE HAVE 8680 05:45:49,000 --> 05:45:51,920 TO HEAR AND WHICH HELPS US TO 8681 05:45:51,920 --> 05:45:53,280 HAVE SERVICES AND PROGRAMS MORE 8682 05:45:53,280 --> 05:45:58,480 EFFICIENT. I WANT TO MOVE TO 8683 05:45:58,480 --> 05:46:00,560 COMMENTS. AMANDA WITH DO WE HAVE 8684 05:46:00,560 --> 05:46:03,360 A COMMENT, I HEAR YOU WOULD LIKE 8685 05:46:03,360 --> 05:46:03,600 TO SPEAK. 8686 05:46:03,600 --> 05:46:06,160 >> I WANT TO QUICKLY ADDRESS THE 8687 05:46:06,160 --> 05:46:08,480 IDEA THAT THE COMMENT ABOUT 8688 05:46:08,480 --> 05:46:11,280 SOCIAL JUSTICE AND THE IDEA THAT 8689 05:46:11,280 --> 05:46:13,600 FASD IS NOT CONSIDERED A 8690 05:46:13,600 --> 05:46:16,960 DISABILITY BY LAW. I WOULD 8691 05:46:16,960 --> 05:46:19,400 ACTUALLY DISAGREE WITH THAT 8692 05:46:19,400 --> 05:46:23,800 BECAUSE THE ADA SAYS THAT A 8693 05:46:23,800 --> 05:46:25,480 DISABILITY IS A PERSON WHO HAS A 8694 05:46:25,480 --> 05:46:27,800 PHYSICAL OR MENTAL IMPAIRMENT 8695 05:46:27,800 --> 05:46:29,600 THAT SUBSTANTIALLY LIMITS ONE OR 8696 05:46:29,600 --> 05:46:34,080 MORE MAJOR LIFE ACTIVITY. I 8697 05:46:34,080 --> 05:46:36,520 THINK FASD EASILY FALLS INTO 8698 05:46:36,520 --> 05:46:37,560 THAT CATEGORY FOR MOST PEOPLE IF 8699 05:46:37,560 --> 05:46:40,600 NOT ALL PEOPLE WITH FASD. THE 8700 05:46:40,600 --> 05:46:42,000 SECOND PART OF THE DEFINITION IS 8701 05:46:42,000 --> 05:46:43,760 THAT IT INCLUDES PEOPLE WHO HAVE 8702 05:46:43,760 --> 05:46:48,160 A RECORD OF SUCH IMPAIRMENT. SO 8703 05:46:48,160 --> 05:46:51,040 EVEN IF YOU DON'T DEFINE OR YOU 8704 05:46:51,040 --> 05:46:52,480 DON'T DEFINE YOURSELF AS HAVING 8705 05:46:52,480 --> 05:46:55,040 A DISABILITY YOU STILL QUALIFY 8706 05:46:55,040 --> 05:46:57,320 UNDER THE ADA AS HAVING A 8707 05:46:57,320 --> 05:46:58,320 DISABILITY AND THE PROTECTIONS 8708 05:46:58,320 --> 05:47:02,960 OF THE ADA IF SOMEONE ELSE 8709 05:47:02,960 --> 05:47:06,120 CONSIDERS YOU TO HAVE THAT 8710 05:47:06,120 --> 05:47:09,080 LIMITATION OR LIMITATIONS 8711 05:47:09,080 --> 05:47:13,920 RELATED TO YOUR LIFE ACTIVITIES 8712 05:47:13,920 --> 05:47:18,440 SO I THINK IT IS COVERED IN TWO 8713 05:47:18,440 --> 05:47:24,760 WAYS. I WANT TO SAY IT IS 8714 05:47:24,760 --> 05:47:27,480 IMPORTANT THAT WE MAKE THAT 8715 05:47:27,480 --> 05:47:32,480 KNOWN. THE ADA IS SUCH AN 8716 05:47:32,480 --> 05:47:35,120 IMPORTANT LAW. IT IS NOT I THINK 8717 05:47:35,120 --> 05:47:36,440 A LOT OF PEOPLE ARE UNCLEAR 8718 05:47:36,440 --> 05:47:39,480 ABOUT WHAT IS COVERED UNDER THE 8719 05:47:39,480 --> 05:47:41,960 ADA. I WANT ALL PEOPLE WITH FASD 8720 05:47:41,960 --> 05:47:43,320 TO KNOW THAT THEY ARE COVERED BY 8721 05:47:43,320 --> 05:47:47,640 THAT. AND IF YOU HAVE QUESTIONS 8722 05:47:47,640 --> 05:47:50,440 I WOULD BE HAPPEN MY TO HAVE 8723 05:47:50,440 --> 05:47:53,920 CONVERSATION ABOUT IT. OWN IT. 8724 05:47:53,920 --> 05:47:56,080 USE IT. EVERYBODY WITH A 8725 05:47:56,080 --> 05:47:56,680 DISABILITY SHOULD BENEFIT FROM 8726 05:47:56,680 --> 05:47:57,800 IT. 8727 05:47:57,800 --> 05:48:00,080 >> I THINK IT IS VERY IMPORTANT 8728 05:48:00,080 --> 05:48:02,600 POINT. MAYBE WE CAN FOLLOW-UP ON 8729 05:48:02,600 --> 05:48:03,760 THAT AND SEE WHAT WE CAN DO TO 8730 05:48:03,760 --> 05:48:08,200 HELP. PEOPLE BECAUSE WE HAVE 8731 05:48:08,200 --> 05:48:10,200 HEARD SO MANY TIMES FROM MANY 8732 05:48:10,200 --> 05:48:11,440 PEOPLE THEY HAVE DIFFICULTIES TO 8733 05:48:11,440 --> 05:48:19,440 GET SERVICES. THANK YOU. ANY 8734 05:48:19,440 --> 05:48:23,600 QUESTIONS AN COMMENTS FROM VIDEO 8735 05:48:23,600 --> 05:48:28,040 CAST? ALL RIGHT. DR. TRISH 8736 05:48:28,040 --> 05:48:30,280 POWELL, TIME FOR CONCLUSION. AND 8737 05:48:30,280 --> 05:48:31,600 I ALSO JUST BACK UP ONE SECOND 8738 05:48:31,600 --> 05:48:33,880 TO TELL WE ARE GOING TO 8739 05:48:33,880 --> 05:48:36,720 FOLLOW-UP WITH VIDEOCAST WE AS 8740 05:48:36,720 --> 05:48:37,720 COMMITTEE WE ARE ALWAYS FOLLOW 8741 05:48:37,720 --> 05:48:41,360 UP ON OUR MEETINGS TO TAKE BACK 8742 05:48:41,360 --> 05:48:43,400 REPORTS TO DISCUSS AND TO LOOK 8743 05:48:43,400 --> 05:48:46,160 WHAT WE CAN DO TO MOVE FORWA FO. 8744 05:48:46,160 --> 05:48:49,800 WITH SOME IMPROVEMENTS. 8745 05:48:49,800 --> 05:48:51,920 >> THANKS. WE ARE ALMOST AT THE 8746 05:48:51,920 --> 05:48:57,240 END OF OUR MEETING SO I WANT TO 8747 05:48:57,240 --> 05:48:58,400 CONTINUE WHO ARE INTERESTED IN 8748 05:48:58,400 --> 05:49:00,160 THIS TOPIC. WHO CARE ABOUT THIS. 8749 05:49:00,160 --> 05:49:02,200 WHO CARE ABOUT MOVING US 8750 05:49:02,200 --> 05:49:03,240 FORWARD. THANK YOU FOR 8751 05:49:03,240 --> 05:49:04,680 LISTENING, THANK YOU FOR YOUR 8752 05:49:04,680 --> 05:49:06,760 INPUT AND AS TATIANA SAID WE ARE 8753 05:49:06,760 --> 05:49:09,880 ALWAYS HERE IN THIS MEETING SO 8754 05:49:09,880 --> 05:49:11,320 PLEASE CONTACT US IF YOU HAVE 8755 05:49:11,320 --> 05:49:12,680 THOUGHTS. I WANT TO THANK ALL 8756 05:49:12,680 --> 05:49:13,560 THE SPEAKERS, I WANT TO THEY CAN 8757 05:49:13,560 --> 05:49:15,240 OUR FEDERAL MEMBERS WHO SHARE 8758 05:49:15,240 --> 05:49:18,560 THEIR AGENCY UPDATES. AND I WANT 8759 05:49:18,560 --> 05:49:19,760 A ESPECIALLY THANK THE PANEL 8760 05:49:19,760 --> 05:49:21,960 MEMBERS I KNOW YOUR ASK ON LOT 8761 05:49:21,960 --> 05:49:24,080 OF OCCASIONS TO SPEAK TO VARIOUS 8762 05:49:24,080 --> 05:49:25,400 AUDIENCES TO SHARE, TO PROVIDE 8763 05:49:25,400 --> 05:49:27,600 YOUR LIVED EXPERIENCES. I KNOW 8764 05:49:27,600 --> 05:49:30,920 THAT THAT'S TAXING BUT WE REALLY 8765 05:49:30,920 --> 05:49:32,520 APPRECIATE THAT YOU CAME HERE 8766 05:49:32,520 --> 05:49:34,400 TODAY, YOU ARE WILLING TO SHARE 8767 05:49:34,400 --> 05:49:35,520 AND I WANT TO LET YOU KNOW THAT 8768 05:49:35,520 --> 05:49:38,720 WE ARE TRULY LISTENING. WE ARE 8769 05:49:38,720 --> 05:49:40,160 LISTENING ALSO TO THE 8770 05:49:40,160 --> 05:49:42,960 RECOMMENDATIONS TO TRY AND 8771 05:49:42,960 --> 05:49:43,520 BROADEN MEMBERSHIP IN THE 8772 05:49:43,520 --> 05:49:44,440 ICCFASD WITH OTHER FEDERAL 8773 05:49:44,440 --> 05:49:45,920 PARTNERS. SOME OF WHOM WE HAVE 8774 05:49:45,920 --> 05:49:47,720 HAD IN THE PAST. SO WE WILL 8775 05:49:47,720 --> 05:49:51,640 CONTINUE TO DO THAT. SO ONCE 8776 05:49:51,640 --> 05:49:52,640 AGAIN, THANK YOU TO ALL, THANK 8777 05:49:52,640 --> 05:49:54,360 YOU ESPECIALLY TO TATIANA, SHE 8778 05:49:54,360 --> 05:49:57,320 PUT TOGETHER THIS MEETING. SHE 8779 05:49:57,320 --> 05:50:00,400 RECRUITED OUR SPEAKERS. SHE'S 8780 05:50:00,400 --> 05:50:02,200 HANDLED THIS BRILLIANTLY AND I 8781 05:50:02,200 --> 05:50:04,280 THINK AS A RESULT WE HAD A VERY 8782 05:50:04,280 --> 05:50:06,080 SUCCESSFUL PUBLIC MEETING OF 8783 05:50:06,080 --> 05:50:07,520 2023 SO TATIANA, THANKS TO 8784 05:50:07,520 --> 05:50:09,680 YOU. THANKS TO ALL OF YOU AND WE 8785 05:50:09,680 --> 05:50:10,800 LOOK FORWARD TO HEARING FROM 8786 05:50:10,800 --> 05:50:20,400 YOU. 8787 05:50:20,400 --> 05:50:24,760 >> THANK YOU ALL. THANK YOU. 8788 05:50:24,760 --> 05:50:35,120 THANK YOU SO MUCH.