1 00:00:05,080 --> 00:00:09,160 >>WELCOME TO TODAY'S 2 00:00:09,160 --> 00:00:12,800 85th MEETING OF NCRA. 3 00:00:12,800 --> 00:00:14,600 WE APPRECIATE YOU BEING HERE, AS 4 00:00:14,600 --> 00:00:14,840 ALWAYS. 5 00:00:14,840 --> 00:00:18,800 AND WE THANK YOU FOR MAKING THE 6 00:00:18,800 --> 00:00:19,880 TIME TO SPEND YOUR AFTERNOON 7 00:00:19,880 --> 00:00:21,320 WITH US AND HEAR A LITTLE BIT 8 00:00:21,320 --> 00:00:24,360 ABOUT WHAT WE'VE BEEN UP TO AT 9 00:00:24,360 --> 00:00:24,600 NCI. 10 00:00:24,600 --> 00:00:26,640 AND SOME OF THE HAPPENINGS 11 00:00:26,640 --> 00:00:27,960 ACROSS THE CANCER ADVOCACY 12 00:00:27,960 --> 00:00:29,600 COMMUNITY. 13 00:00:29,600 --> 00:00:30,480 I'LL HAND IT OVER TO ANGIE IN 14 00:00:30,480 --> 00:00:32,800 JUST A MOMENT TO GET US 15 00:00:32,800 --> 00:00:36,240 UNDERWAY, BUT JUST TO LET YOU 16 00:00:36,240 --> 00:00:37,840 KNOW WE'RE LOOKING FORWARD TO 17 00:00:37,840 --> 00:00:38,400 OUR AGENDA TODAY. 18 00:00:38,400 --> 00:00:42,040 WE'LL HEAR FROM OUR DIRECTOR, 19 00:00:42,040 --> 00:00:43,200 DR. SHARPLESS. 20 00:00:43,200 --> 00:00:45,200 WE'LL HAVE A LEDGE UPDATE AS 21 00:00:45,200 --> 00:00:47,600 ALWAYS AND A CHANCE TO HEAR 22 00:00:47,600 --> 00:00:53,400 TODAY FROM SOME OF NCI'S 23 00:00:53,400 --> 00:00:55,280 LEADERSHIP IN CANCER CONTROL AND 24 00:00:55,280 --> 00:00:56,800 POPULATION SCIENCE CONTROL AND 25 00:00:56,800 --> 00:00:59,080 OFFICE OF CANCER SURVIVORSHIP, 26 00:00:59,080 --> 00:01:01,960 BOTH PORTIONS OF NCI OFTEN HAVE 27 00:01:01,960 --> 00:01:03,600 WORK THAT RELATES TO THE 28 00:01:03,600 --> 00:01:06,320 ADVOCACY COMMUNITY AND IS OF 29 00:01:06,320 --> 00:01:07,760 INTEREST TO THE ADVOCACY 30 00:01:07,760 --> 00:01:13,320 COMMUNITY, WE'RE INTERESTED IN 31 00:01:13,320 --> 00:01:14,040 HEARING FROM LEADERSHIP ABOUT 32 00:01:14,040 --> 00:01:15,360 WHAT THEY ARE UP TO AND VISION 33 00:01:15,360 --> 00:01:15,840 FOR THE FUTURE. 34 00:01:15,840 --> 00:01:18,040 SECOND HALF OF THE MEETING TODAY 35 00:01:18,040 --> 00:01:20,320 WE'LL BE TALKING ABOUT CANCER 36 00:01:20,320 --> 00:01:21,280 ADVOCACY TRAINING, SOMETHING 37 00:01:21,280 --> 00:01:24,800 THAT'S IMPORTANT TO THE RESEARCH 38 00:01:24,800 --> 00:01:26,320 COMMUNITY AS WELL AS ADVOCACY 39 00:01:26,320 --> 00:01:28,800 COMMUNITY GROOMING THE NEXT 40 00:01:28,800 --> 00:01:31,880 GENERATION OF STRONG CANCER 41 00:01:31,880 --> 00:01:34,680 RESEARCH ADVOCATES. 42 00:01:34,680 --> 00:01:38,400 I THANK THE STAFF FOR GETTING 43 00:01:38,400 --> 00:01:40,400 US HERE. 44 00:01:40,400 --> 00:01:43,800 ANGIE, OUR CHAIR, FOR HELPING US 45 00:01:43,800 --> 00:01:44,640 THINK THROUGH THE AGENDA, AND 46 00:01:44,640 --> 00:01:46,200 APPRECIATE THE TIME YOU PUT INTO 47 00:01:46,200 --> 00:01:46,840 THIS BOARD. 48 00:01:46,840 --> 00:01:48,480 WITH THAT I'LL HAND IT OVER TO 49 00:01:48,480 --> 00:01:51,920 ANGIE TO GET US UNDERWAY. 50 00:01:51,920 --> 00:01:53,040 HERE WE GO. 51 00:01:53,040 --> 00:01:55,200 >> GREAT TO SEE EVERYONE. 52 00:01:55,200 --> 00:01:56,360 THANK YOU, AMY. 53 00:01:56,360 --> 00:02:01,560 I'M EXCITED ABOUT TODAY'S 54 00:02:01,560 --> 00:02:03,040 AGENDA, AMY AND VINCENT DID A 55 00:02:03,040 --> 00:02:04,560 GREAT JOB PULLING SPEAKERS AND 56 00:02:04,560 --> 00:02:05,800 AGENDA TOGETHER, A VERY PACKED 57 00:02:05,800 --> 00:02:06,200 DAY. 58 00:02:06,200 --> 00:02:07,960 I THINK WE'RE GOING TO HAVE A 59 00:02:07,960 --> 00:02:10,080 GREAT CONVERSATION AND HOPEFULLY 60 00:02:10,080 --> 00:02:11,560 A LIVELY CONVERSATION TODAY. 61 00:02:11,560 --> 00:02:13,320 I'M GOING TO START BY CALLING 62 00:02:13,320 --> 00:02:15,400 THE MEETING INTO ORDER AND 63 00:02:15,400 --> 00:02:16,920 READING OUR OPENING STATEMENT. 64 00:02:16,920 --> 00:02:18,880 AS COMMITTEE MEMBERS, I WANT TO 65 00:02:18,880 --> 00:02:24,200 REMIND YOU YOU MUST ABSENT 66 00:02:24,200 --> 00:02:26,320 YOURSELF DURING DISCUSSIONS WHEN 67 00:02:26,320 --> 00:02:27,560 YOUR PARTICIPATION ON A 68 00:02:27,560 --> 00:02:29,320 DELIBERATION ON PRODUCT, PROGRAM 69 00:02:29,320 --> 00:02:30,280 OR SPECIFIC MATTER COULD 70 00:02:30,280 --> 00:02:31,640 CONSTITUTE CONFLICT OF FROM OR 71 00:02:31,640 --> 00:02:33,680 CREATE APPEARANCE OF ONE. 72 00:02:33,680 --> 00:02:35,920 IT'S INCUMBENT UPON YOU TO 73 00:02:35,920 --> 00:02:37,600 ADVISE THE EXECUTIVE SECRETARY 74 00:02:37,600 --> 00:02:39,000 AND ABSTAIN FROM ANY 75 00:02:39,000 --> 00:02:42,400 PARTICIPATION IN DISCUSSION OR 76 00:02:42,400 --> 00:02:44,400 ACTION REGARDING THAT MATTER IN 77 00:02:44,400 --> 00:02:45,480 LIGHT OF POLICIES GOVERNING 78 00:02:45,480 --> 00:02:46,680 CONFLICT OF HAVE BASED ON 79 00:02:46,680 --> 00:02:48,080 SPECIAL HOLDINGS OF SPECIAL 80 00:02:48,080 --> 00:02:49,480 GOVERNMENT EMPLOYEES, WHICH 81 00:02:49,480 --> 00:02:50,680 INCLUDES ALL MEMBERS OF THIS 82 00:02:50,680 --> 00:02:53,880 COMMITTEE, WE MUST DEPEND ON TO 83 00:02:53,880 --> 00:02:54,800 YOU VOLUNTARILY ABSENT YOURSELF 84 00:02:54,800 --> 00:02:56,360 DURING ANY AND ALL DISCUSSIONS 85 00:02:56,360 --> 00:02:57,920 OF MATTERS THAT COULD 86 00:02:57,920 --> 00:02:59,600 CONCEIVABLE IMPACT THE STATUS OF 87 00:02:59,600 --> 00:03:05,200 THOSE HOLDINGS. 88 00:03:05,200 --> 00:03:07,520 A QUORUM OF BOARD MEMBERS IS 89 00:03:07,520 --> 00:03:08,800 REQUIRED FOR EACH INSTANCE IN 90 00:03:08,800 --> 00:03:10,800 WHICH A VOTE OCCURS IN OPEN 91 00:03:10,800 --> 00:03:11,440 SESSION. 92 00:03:11,440 --> 00:03:13,960 A MINIMUM OF 6 APPOINTED MEMBERS 93 00:03:13,960 --> 00:03:20,960 MUST BE PRESENT TO VOICE THEIR 94 00:03:20,960 --> 00:03:22,920 VOTES, NEW MEMBERS NOT VOTING 95 00:03:22,920 --> 00:03:28,560 UNTIL CLEARED BY ETHICS AND 96 00:03:28,560 --> 00:03:29,480 OFFICE OF HUMAN RESOURCES. 97 00:03:29,480 --> 00:03:33,440 MEMBERS OF THE PUBLIC WHO WISH 98 00:03:33,440 --> 00:03:36,200 TO EXPRESS VIEWS BY WRITE MISS 99 00:03:36,200 --> 00:03:36,880 AMY WILLIAMS, EXECUTIVE 100 00:03:36,880 --> 00:03:38,400 SECRETARY, WITHIN TEN DAYS OF 101 00:03:38,400 --> 00:03:39,720 THE MEETING AND WRITTEN 102 00:03:39,720 --> 00:03:41,920 STATEMENTS BY MEMBERS OF THE 103 00:03:41,920 --> 00:03:44,280 PUBLIC WILL RECEIVE CAREFUL 104 00:03:44,280 --> 00:03:44,600 CONSIDERATION. 105 00:03:44,600 --> 00:03:48,400 I WELCOME YOU TO THE 85th NCRA 106 00:03:48,400 --> 00:03:48,680 MEETING. 107 00:03:48,680 --> 00:03:53,240 I'M LOOKING FORWARD TO OUR FIRST 108 00:03:53,240 --> 00:03:54,720 SPEAKER, DR. NED SHARPLESS, NCI 109 00:03:54,720 --> 00:03:55,200 DIRECTOR. 110 00:03:55,200 --> 00:03:58,360 I THINK WE HAVE A LOT ON THE 111 00:03:58,360 --> 00:03:58,600 AGENDA. 112 00:03:58,600 --> 00:04:02,200 HE'S GOT A PACKED UPDATE. 113 00:04:02,200 --> 00:04:06,800 REALLY LOOKING FORWARD TO THIS 114 00:04:06,800 --> 00:04:07,560 PRESENTATION. 115 00:04:07,560 --> 00:04:07,920 >> GREAT. 116 00:04:07,920 --> 00:04:08,920 GOOD MORNING. 117 00:04:08,920 --> 00:04:10,400 GOOD AFTERNOON, EVERYONE. 118 00:04:10,400 --> 00:04:12,240 GOOD TO SEE YOU VIRTUALLY. 119 00:04:12,240 --> 00:04:15,360 IT'S A BIG DAY FOR THE NCI. 120 00:04:15,360 --> 00:04:16,880 WE FOUND OUT THIS MORNING 121 00:04:16,880 --> 00:04:19,800 THERE'S BEEN SOME PROGRESS 122 00:04:19,800 --> 00:04:24,400 AROUND THE 22 APPROPRIATION 123 00:04:24,400 --> 00:04:26,200 OMNIBUS SPENDING BILL, I'LL TALK 124 00:04:26,200 --> 00:04:27,480 ABOUT THAT, HOLLY WILL TALK 125 00:04:27,480 --> 00:04:28,800 ABOUT THAT IN THE LEGISLATIVE 126 00:04:28,800 --> 00:04:29,200 UPDATE. 127 00:04:29,200 --> 00:04:30,200 I'M BACK IN THE OFFICE BUT ALSO 128 00:04:30,200 --> 00:04:32,200 BACK IN THE OFFICE WITH LOTS OF 129 00:04:32,200 --> 00:04:34,000 OTHER PEOPLE FROM THE DIRECTOR'S 130 00:04:34,000 --> 00:04:35,520 OFFICE TODAY SO THIS IS ONE OF 131 00:04:35,520 --> 00:04:38,360 THE FIRST DAYS WE'VE HAD MANY 132 00:04:38,360 --> 00:04:39,760 PEOPLE BACK SIMULTANEOUSLY WITH 133 00:04:39,760 --> 00:04:41,240 REAL IN-PERSON WORK FOR A 134 00:04:41,240 --> 00:04:43,160 DEPUTY'S MEETING, IN FACT. 135 00:04:43,160 --> 00:04:45,360 SOME OF THESE PEOPLE LIKE DOUG 136 00:04:45,360 --> 00:04:47,360 LOWY I SEE EVERY DAY BY ZOOM 137 00:04:47,360 --> 00:04:49,000 CHAT FOR TWO YEARS, IT'S STILL 138 00:04:49,000 --> 00:04:51,480 QUITE DIFFERENT TO BE IN THE 139 00:04:51,480 --> 00:04:55,320 ROOM WITH EVERYONE, TALKING 140 00:04:55,320 --> 00:04:57,320 ABOUT MAKING PROGRESS FOR 141 00:04:57,320 --> 00:04:58,000 CANCER, INVIGORATING AND 142 00:04:58,000 --> 00:04:59,360 WONDERFUL, GOOD TO SEE SO MANY 143 00:04:59,360 --> 00:05:00,400 OLD FRIENDS. 144 00:05:00,400 --> 00:05:01,800 THINGS HAPPENED WHILE WE WERE 145 00:05:01,800 --> 00:05:02,720 GONE. 146 00:05:02,720 --> 00:05:03,720 MY PLANTS ALL DIED. 147 00:05:03,720 --> 00:05:05,520 SOME OF THE LIGHTS DON'T WORK. 148 00:05:05,520 --> 00:05:07,120 BUT IT'S STILL GREAT TO BE BACK. 149 00:05:07,120 --> 00:05:09,480 TODAY I THOUGHT I WOULD TALK 150 00:05:09,480 --> 00:05:11,400 ABOUT WHAT'S HAPPENED OVER THE 151 00:05:11,400 --> 00:05:12,800 PAST YEAR, BRIEFLY TAKE STOCK, 152 00:05:12,800 --> 00:05:15,440 MENTIONING SOME ACTIVITIES 153 00:05:15,440 --> 00:05:16,760 AROUND THE NATIONAL CANCER ACT 154 00:05:16,760 --> 00:05:17,600 ANNIVERSARY, THAT WENT REALLY 155 00:05:17,600 --> 00:05:17,960 WELL. 156 00:05:17,960 --> 00:05:19,600 I THANK THOSE WHO HELPED MOVE 157 00:05:19,600 --> 00:05:20,400 THAT ALONG. 158 00:05:20,400 --> 00:05:22,320 I WANT TO TALK ABOUT FISCAL YEAR 159 00:05:22,320 --> 00:05:24,000 22, NOW THAT WE HAVE SOME NEWS. 160 00:05:24,000 --> 00:05:26,160 I WANT TO TALK ABOUT THE 161 00:05:26,160 --> 00:05:27,440 PRESIDENT'S ANNOUNCEMENTS AROUND 162 00:05:27,440 --> 00:05:30,320 THE SUPER CHARGED CANCER 163 00:05:30,320 --> 00:05:30,600 MOONSHOT. 164 00:05:30,600 --> 00:05:32,600 I WANT TO SUMMARIZE SOME 165 00:05:32,600 --> 00:05:33,600 EXCITING RESEARCH DEVELOPMENTS 166 00:05:33,600 --> 00:05:35,200 IN CANCER RESEARCH THAT HAPPENED 167 00:05:35,200 --> 00:05:37,960 IN THE LAST QUARTER SINCE WE 168 00:05:37,960 --> 00:05:39,240 LAST SPOKE. 169 00:05:39,240 --> 00:05:42,760 ALSO, I AIM TO LEAVE TIME FOR 170 00:05:42,760 --> 00:05:43,520 DISCUSSION. 171 00:05:43,520 --> 00:05:44,720 NEXT SLIDE PLEASE. 172 00:05:44,720 --> 00:05:47,560 SINCE WE LAST MET WE'VE 173 00:05:47,560 --> 00:05:48,160 CELEBRATED THE ACTUAL 174 00:05:48,160 --> 00:05:49,680 ANNIVERSARY OF THE SIGNING OF 175 00:05:49,680 --> 00:05:50,960 THE NATIONAL CANCER ACT, 176 00:05:50,960 --> 00:05:52,920 DECEMBER 23 OF LAST YEAR. 177 00:05:52,920 --> 00:05:54,800 IT WAS GRATIFYING TO SEE THE 178 00:05:54,800 --> 00:05:56,760 TSUNAMI OF INTEREST ACROSS THE 179 00:05:56,760 --> 00:05:57,440 CANCER RESEARCH COMMUNITY AROUND 180 00:05:57,440 --> 00:05:59,400 THE ANNIVERSARY. 181 00:05:59,400 --> 00:06:02,800 WE HAD GREAT BUY-IN IN CANCER 182 00:06:02,800 --> 00:06:03,880 CENTERS, ACADEMIC INSTITUTIONS, 183 00:06:03,880 --> 00:06:05,080 SOCIETIES AND FOUNDATIONS THAT 184 00:06:05,080 --> 00:06:06,480 ARE INTERESTED IN CANCER 185 00:06:06,480 --> 00:06:06,880 RESEARCH. 186 00:06:06,880 --> 00:06:10,960 I THINK IT WAS A VERY GOOD KIND 187 00:06:10,960 --> 00:06:12,880 OF CONVERGENCE AROUND THE 188 00:06:12,880 --> 00:06:14,080 NATIONAL CONVERSATION AROUND 189 00:06:14,080 --> 00:06:14,320 CANCER. 190 00:06:14,320 --> 00:06:17,080 IT WAS USEFUL IN MANY WAYS, I 191 00:06:17,080 --> 00:06:19,000 THINK ONE OF THE IMPORTANT 192 00:06:19,000 --> 00:06:20,440 PARTNERS IN THIS COMMUNICATION 193 00:06:20,440 --> 00:06:21,480 IS CONGRESS OF COURSE, SO I 194 00:06:21,480 --> 00:06:24,000 THINK HAVING SO MANY MEMBERS 195 00:06:24,000 --> 00:06:26,600 FROM CONGRESS HERE FOR DISPARATE 196 00:06:26,600 --> 00:06:28,640 VOICES WAS TIMELY AND GOOD. 197 00:06:28,640 --> 00:06:31,000 AND A LOT OF GREAT MEDIA PICKUP. 198 00:06:31,000 --> 00:06:36,600 I THINK WE GOT TO TELL A LOT OF 199 00:06:36,600 --> 00:06:37,600 STORIES OF CANCER RESEARCH, MARY 200 00:06:37,600 --> 00:06:42,440 LASKER AND -- AND WHAT HAPPENED 201 00:06:42,440 --> 00:06:43,760 THE LAST FIVE DECADES AND A LOT 202 00:06:43,760 --> 00:06:46,520 ABOUT WHERE WE STILL NEED TO GO, 203 00:06:46,520 --> 00:06:47,680 600,000 AMERICANS ARE STILL 204 00:06:47,680 --> 00:06:49,560 DYING OF CANCER EVERY YEAR, 205 00:06:49,560 --> 00:06:51,080 CANCER, EVEN IN PATIENTS WHERE 206 00:06:51,080 --> 00:06:55,680 WE CAN CURE THEM, THEY ARE OFTEN 207 00:06:55,680 --> 00:06:57,120 LEFT WITH TERRIBLE SURVIVORSHIP 208 00:06:57,120 --> 00:06:59,600 CHALLENGES, NEED FOR MORE 209 00:06:59,600 --> 00:07:01,600 RESEARCH IN CERTAIN CANCERS THAT 210 00:07:01,600 --> 00:07:02,960 HAVE PROVEN ELUSIVE FOR 211 00:07:02,960 --> 00:07:03,920 THERAPEUTIC ADVANCES, ET CETERA. 212 00:07:03,920 --> 00:07:06,720 I THINK IT WAS A GREAT TIME TO 213 00:07:06,720 --> 00:07:07,920 TAKE STOCK OF WHAT'S HAPPENED, 214 00:07:07,920 --> 00:07:09,000 AND NOW THAT WE HAVE PRESIDENT 215 00:07:09,000 --> 00:07:11,120 BIDEN TALKING SO MUCH ABOUT THE 216 00:07:11,120 --> 00:07:13,200 FUTURE OF CANCER RESEARCH AND 217 00:07:13,200 --> 00:07:15,360 NEW CANCER MOONSHOT WHAT'S GOING 218 00:07:15,360 --> 00:07:18,600 TO COME NEXT. 219 00:07:18,600 --> 00:07:21,200 ONE LAST THING, ON THE NEXT 220 00:07:21,200 --> 00:07:22,520 SLIDE PLEASE, FIRST LADY DR. 221 00:07:22,520 --> 00:07:24,000 JILL BIDEN HAS BEEN A WONDERFUL 222 00:07:24,000 --> 00:07:27,000 PARTNER IN A LOT OF OUR 223 00:07:27,000 --> 00:07:28,840 COMMUNICATIONS EFFORTS AROUND 224 00:07:28,840 --> 00:07:31,800 THE NCIA 50 AND NEED FOR CANCER 225 00:07:31,800 --> 00:07:32,120 SCREENING. 226 00:07:32,120 --> 00:07:34,160 DR. BIDEN HAS BEEN A CLARION 227 00:07:34,160 --> 00:07:35,800 VOICE ON THESE TOPICS, GREAT TO 228 00:07:35,800 --> 00:07:37,080 WORK WITH HER OFFICE. 229 00:07:37,080 --> 00:07:38,160 SHE CREATED THIS GREAT VIDEO I'D 230 00:07:38,160 --> 00:07:39,280 LIKE TO SHOW YOU. 231 00:07:39,280 --> 00:07:40,880 IF I COULD HAVE THE A V PEOPLE 232 00:07:40,880 --> 00:07:57,600 TO PLAY IT FOR ME PLEASE. 233 00:07:57,600 --> 00:08:03,360 IT'S COMING UP. 234 00:08:03,360 --> 00:08:04,440 235 00:08:04,440 --> 00:08:13,760 NO SOUND. 236 00:08:13,760 --> 00:08:19,400 237 00:08:19,400 --> 00:08:20,400 >> FIGHT THE FIGHT AGAINST 238 00:08:20,400 --> 00:08:23,560 CANCER. 239 00:08:23,560 --> 00:08:26,120 240 00:08:26,120 --> 00:08:29,800 SINCE THEN, RESEARCHERS, 241 00:08:29,800 --> 00:08:30,320 POLICYMAKERS, PATIENTS, 242 00:08:30,320 --> 00:08:33,040 SURVIVORS, 50 YEARS AGO A 243 00:08:33,040 --> 00:08:34,800 DEDICATED COALITION OF ADVOCATES 244 00:08:34,800 --> 00:08:36,880 CAME TOGETHER TO WITNESS 245 00:08:36,880 --> 00:08:40,200 PRESIDENT NIXON SIGN THE 246 00:08:40,200 --> 00:08:42,000 NATIONAL CANCER ACT OF 1971. 247 00:08:42,000 --> 00:08:43,960 ON THAT DECEMBER DAY, THE UNITED 248 00:08:43,960 --> 00:08:46,920 STATES WROTE THE FIRST CHAPTER 249 00:08:46,920 --> 00:08:49,680 IN OUR UNIFIED FIGHT AGAINST 250 00:08:49,680 --> 00:08:50,240 CANCER. 251 00:08:50,240 --> 00:08:53,280 SINCE THEN, WE'VE INVESTED IN 252 00:08:53,280 --> 00:08:56,240 PEOPLE AND SCIENCE, ADVANCING 253 00:08:56,240 --> 00:08:57,120 CANCER SCREENING, PREVENTION, 254 00:08:57,120 --> 00:08:59,400 DIAGNOSIS AND TREATMENT. 255 00:08:59,400 --> 00:09:01,480 WE'VE HELPED MILLIONS OF 256 00:09:01,480 --> 00:09:04,400 PATIENTS LIVE LONGER FULLER 257 00:09:04,400 --> 00:09:04,800 LIVES. 258 00:09:04,800 --> 00:09:07,200 BUT DESPITE OUR TREMENDOUS 259 00:09:07,200 --> 00:09:08,400 PROGRESS, THE HEARTBREAKING 260 00:09:08,400 --> 00:09:10,120 REALITY IS THAT CANCER IS STILL 261 00:09:10,120 --> 00:09:13,120 A LEADING CAUSE OF DEATH IN OUR 262 00:09:13,120 --> 00:09:13,520 COUNTRY. 263 00:09:13,520 --> 00:09:15,760 WE STILL DON'T HAVE ENOUGH 264 00:09:15,760 --> 00:09:17,240 METHODS TO PREVENT IT. 265 00:09:17,240 --> 00:09:19,360 SOME TREATMENTS COME WITH 266 00:09:19,360 --> 00:09:20,800 SERIOUS SIDE EFFECTS. 267 00:09:20,800 --> 00:09:24,040 AND INEQUITIES LEAD TO FAR TOO 268 00:09:24,040 --> 00:09:27,880 MANY LIVES LOST. 269 00:09:27,880 --> 00:09:30,520 IN 1971, THEN-PRESIDENT NIXON 270 00:09:30,520 --> 00:09:31,920 CALLED FOR A TOTAL NATIONAL 271 00:09:31,920 --> 00:09:35,520 COMMITMENT TO FINDING A CURE. 272 00:09:35,520 --> 00:09:37,720 NOW, WE'RE READY TO DO MORE. 273 00:09:37,720 --> 00:09:40,880 TO END CANCER AS WE KNOW IT. 274 00:09:40,880 --> 00:09:43,880 IT'S AN AMBITIOUS GOAL, BUT FROM 275 00:09:43,880 --> 00:09:45,200 BRILLIANT RESEARCHERS TO 276 00:09:45,200 --> 00:09:47,800 PASSIONATE PROVIDERS TO INFORMED 277 00:09:47,800 --> 00:09:49,880 AND ENGAGED PATIENTS, I'VE SEEN 278 00:09:49,880 --> 00:09:53,640 THE HEART AND GRIT OF OUR 279 00:09:53,640 --> 00:09:53,960 COMMUNITIES. 280 00:09:53,960 --> 00:09:57,040 THERE IS NOTHING OUT OF OUR 281 00:09:57,040 --> 00:09:57,360 REACH. 282 00:09:57,360 --> 00:09:59,600 CANCER IS PART OF THE BIDEN 283 00:09:59,600 --> 00:10:01,280 FAMILY STORY. 284 00:10:01,280 --> 00:10:04,520 IT'S PART OF SO MANY AMERICAN 285 00:10:04,520 --> 00:10:05,800 STORIES. 286 00:10:05,800 --> 00:10:08,240 CANCER TOUCHES US ALL. 287 00:10:08,240 --> 00:10:11,000 BUT TOGETHER, WE CAN CHANGE THAT 288 00:10:11,000 --> 00:10:11,320 STORY. 289 00:10:11,320 --> 00:10:13,920 WE CAN END THE TRAGEDY OF CANCER 290 00:10:13,920 --> 00:10:15,920 AS WE KNOW IT. 291 00:10:15,920 --> 00:10:19,160 AND NOTHING WILL STOP US. 292 00:10:19,160 --> 00:10:22,600 * 293 00:10:22,600 --> 00:10:23,040 >> GREAT. 294 00:10:23,040 --> 00:10:23,600 THANK YOU. 295 00:10:23,600 --> 00:10:25,160 COULD I HAVE THE SLIDES BACK UP? 296 00:10:25,160 --> 00:10:27,440 MAYBE A FEW POINTS TO MAKE ABOUT 297 00:10:27,440 --> 00:10:27,840 THAT. 298 00:10:27,840 --> 00:10:30,640 I THINK THE FIRST LADY'S A 299 00:10:30,640 --> 00:10:32,000 REALLY GOOD SPOKESMAN. 300 00:10:32,000 --> 00:10:34,440 >> A LIFETIME AGO. 301 00:10:34,440 --> 00:10:35,120 >> OH, WAIT. 302 00:10:35,120 --> 00:10:37,720 THE SLIDES BACK UP PLEASE. 303 00:10:37,720 --> 00:10:40,120 SHE'S REALLY A COMPELLING 304 00:10:40,120 --> 00:10:42,000 SPOKESPERSON FOR OUR ISSUES, I 305 00:10:42,000 --> 00:10:44,920 THINK SHE TALKED ABOUT THE 306 00:10:44,920 --> 00:10:48,560 BURDEN OF CANCER STILL PERSIST, 307 00:10:48,560 --> 00:10:49,640 NEED FOR ADDITIONAL PROGRESS, 308 00:10:49,640 --> 00:10:51,920 THE TOLL OF CANCER ON THE 309 00:10:51,920 --> 00:10:54,240 AMERICAN PUBLIC TODAY. 310 00:10:54,240 --> 00:10:56,400 AND USED THESE PHRASES THAT 311 00:10:56,400 --> 00:11:01,160 WE'RE USING, PRESIDENT'S PHRASE 312 00:11:01,160 --> 00:11:05,000 OF ENDING CANCER AS WE KNOW IT, 313 00:11:05,000 --> 00:11:09,200 THE NCI'S LANGUAGE AROUND THE 314 00:11:09,200 --> 00:11:10,840 NCA 50 NOTHING WILL STOP US. 315 00:11:10,840 --> 00:11:11,920 WE APPRECIATE THEIR SUPPORT. 316 00:11:11,920 --> 00:11:13,120 YOU NOTICED ON THE OPENING 317 00:11:13,120 --> 00:11:16,040 SCREEN A LOT OF FACES, SOME I 318 00:11:16,040 --> 00:11:20,440 SUSPECT WERE VERY FAMILY 319 00:11:20,440 --> 00:11:22,400 INCLUDING PROMINENT CANCER 320 00:11:22,400 --> 00:11:23,600 ADVOCACY COMMUNITY, THIS 321 00:11:23,600 --> 00:11:25,480 MATERIAL IS HELPFUL AND SHOWS 322 00:11:25,480 --> 00:11:27,200 WHAT A TOP PRIORITY THIS IS FOR 323 00:11:27,200 --> 00:11:28,600 THE BIDEN ADMINISTRATION. 324 00:11:28,600 --> 00:11:28,920 NEXT SLIDE. 325 00:11:28,920 --> 00:11:31,880 LET ME SAY WORDS ABOUT THE 326 00:11:31,880 --> 00:11:33,280 BUDGET INCLUDING FY 22. 327 00:11:33,280 --> 00:11:35,280 HOLLY WILL SPEAK MORE ABOUT 328 00:11:35,280 --> 00:11:35,600 THAT. 329 00:11:35,600 --> 00:11:37,920 OUR ALLOCATION FOR THE LAST 330 00:11:37,920 --> 00:11:44,480 COUPLE YEARS IS SHOWN HERE, 331 00:11:44,480 --> 00:11:46,240 INCLUDING, YOU KNOW, THE OMNIBUS 332 00:11:46,240 --> 00:11:47,320 APPROPRIATIONS ACT WE LEARNED 333 00:11:47,320 --> 00:11:48,400 ABOUT THIS MORNING. 334 00:11:48,400 --> 00:11:50,200 THIS IS NOT PASSED YET. 335 00:11:50,200 --> 00:11:51,480 THIS STILL -- THERE'S STILL A 336 00:11:51,480 --> 00:11:52,560 LITTLE BIT OF WORK TO DO BUT 337 00:11:52,560 --> 00:11:54,560 THIS IS A FAIRLY ADVANCED DRAFT 338 00:11:54,560 --> 00:11:55,600 AND HOLLY CAN DESCRIBE HOW 339 00:11:55,600 --> 00:11:57,600 LIKELY WE THINK THIS IS TO COME 340 00:11:57,600 --> 00:11:58,440 INTO LAW. 341 00:11:58,440 --> 00:12:00,200 SO, WHAT YOU SEE HERE IS THAT 342 00:12:00,200 --> 00:12:02,400 FIRST OFF THERE'S BEEN STEADY 343 00:12:02,400 --> 00:12:05,280 INCREASE IN FUNDING FOR THE NCI 344 00:12:05,280 --> 00:12:06,920 SINCE 2015, REFLECTING THE 345 00:12:06,920 --> 00:12:08,120 BIPARTISAN SUPPORT FOR CANCER 346 00:12:08,120 --> 00:12:09,840 RESEARCH THAT EXISTS IN 347 00:12:09,840 --> 00:12:11,000 CONGRESS. 348 00:12:11,000 --> 00:12:14,240 WE ALSO SEE IN 2017 ORANGE BARS 349 00:12:14,240 --> 00:12:15,240 APPEAR, THAT'S THE 21ST CENTURY 350 00:12:15,240 --> 00:12:17,520 CURES ACT, FUNDING FOR THE 351 00:12:17,520 --> 00:12:18,600 ORIGINAL CANCER MOONSHOT. 352 00:12:18,600 --> 00:12:22,880 AND AS THIS SHOWS HERE, THAT'S 353 00:12:22,880 --> 00:12:23,680 SLATED TO GO TO $194 MILLION IN 354 00:12:23,680 --> 00:12:25,960 2022, FROM A PEAK OF $400 355 00:12:25,960 --> 00:12:27,400 MILLION IN 2019. 356 00:12:27,400 --> 00:12:29,480 THE GREEN BAR STARTING IN 2020 357 00:12:29,480 --> 00:12:36,000 IS THE CHILDHOOD CANCER DATA 358 00:12:36,000 --> 00:12:37,520 INITIATIVE, CCDI FOR TEN YEARS, 359 00:12:37,520 --> 00:12:39,840 TOTAL OF TEN YEARS OF FUNDING. 360 00:12:39,840 --> 00:12:42,760 ALSO IN 2021 WE RECEIVED A 361 00:12:42,760 --> 00:12:45,240 ONE-TIME APPROPRIATION OF 362 00:12:45,240 --> 00:12:46,200 FUNDING FOR SEROLOGY RESEARCH 363 00:12:46,200 --> 00:12:47,600 RELATED TO COVID PANDEMIC, I'VE 364 00:12:47,600 --> 00:12:48,760 SPOKEN TO THIS GROUP BEFORE 365 00:12:48,760 --> 00:12:49,840 ABOUT EXCITING THINGS THE NCI 366 00:12:49,840 --> 00:12:53,720 USED THOSE FUNDS FOR AND 367 00:12:53,720 --> 00:12:54,440 CONTINUES, THE EXCITING COVID 368 00:12:54,440 --> 00:12:57,200 RESEARCH WE CONTINUE TO LEAD 369 00:12:57,200 --> 00:12:58,000 HERE AT THE NATIONAL CANCER 370 00:12:58,000 --> 00:12:58,800 INSTITUTE. 371 00:12:58,800 --> 00:13:01,240 OF COURSE THE NEW NEWS, I 372 00:13:01,240 --> 00:13:02,760 MENTIONED THE OMNIBUS 373 00:13:02,760 --> 00:13:04,840 APPROPRIATIONS ACT FOR FY 22, IT 374 00:13:04,840 --> 00:13:07,960 WOULD INCLUDE $350 MILLION 375 00:13:07,960 --> 00:13:11,640 INCREASE OVER FY 21 FOR NCI, 376 00:13:11,640 --> 00:13:17,560 TOTAL BUDGET $6.9 BILLION, A 377 00:13:17,560 --> 00:13:19,520 GOOD NUMBER, REFLECTS ROBUST 378 00:13:19,520 --> 00:13:22,000 SUPPORT FOR NATIONAL CANCER 379 00:13:22,000 --> 00:13:22,920 INSTITUTE, WITH FLEXIBILITY TO 380 00:13:22,920 --> 00:13:24,680 DO NEW THINGS. 381 00:13:24,680 --> 00:13:26,000 NEXT SLIDE. 382 00:13:26,000 --> 00:13:28,200 ONE OF THE FIRST THINGS WE'LL 383 00:13:28,200 --> 00:13:31,680 HAVE TO DEAL WITH IS THIS ISSUE. 384 00:13:31,680 --> 00:13:33,520 UP UNTIL, WELL, EVEN THROUGH 385 00:13:33,520 --> 00:13:35,160 TODAY WE'RE OPERATING UNDER 386 00:13:35,160 --> 00:13:36,040 INTERIM PAY LINES. 387 00:13:36,040 --> 00:13:39,400 SO THEY ARE SHOWN HERE. 388 00:13:39,400 --> 00:13:43,240 THESE ARE THE PAYLINES TO DECIDE 389 00:13:43,240 --> 00:13:45,200 ABOUT FINDING FOR R01s, 390 00:13:45,200 --> 00:13:50,960 P01s, GRANTS IN THE RPG POOL, 391 00:13:50,960 --> 00:13:51,800 ESTABLISHED, EARLY STAGE, 392 00:13:51,800 --> 00:13:53,960 R21s, ET CETERA. 393 00:13:53,960 --> 00:13:55,400 WE HAD CONSERVATIVE INTERIM 394 00:13:55,400 --> 00:13:56,680 PAYLINES THROUGH THE FISCAL 395 00:13:56,680 --> 00:13:58,200 YEARS THAT BEGAN OCTOBER 1, BUT 396 00:13:58,200 --> 00:14:01,880 BECAUSE WE'VE BEEN OPERATING 397 00:14:01,880 --> 00:14:02,440 UNDER CONTINUING RESOLUTION 398 00:14:02,440 --> 00:14:05,280 UNTIL NOW, PERHAPS THROUGH THE 399 00:14:05,280 --> 00:14:06,760 NEXT FEW DAYS, WE'VE ADOPTED A 400 00:14:06,760 --> 00:14:09,000 CONSERVATIVE POSTURE IN TERMS OF 401 00:14:09,000 --> 00:14:09,280 PAYLINES. 402 00:14:09,280 --> 00:14:10,880 BUT I HAVE EVERY HOPE AND 403 00:14:10,880 --> 00:14:12,520 EXPECTATION NOW THAT WE HAVE 404 00:14:12,520 --> 00:14:16,840 SOME CLARITY AROUND OUR BUDGET 405 00:14:16,840 --> 00:14:17,800 AND SHOULD OMNIBUS 406 00:14:17,800 --> 00:14:19,360 APPROPRIATIONS ACT BE PASSED AND 407 00:14:19,360 --> 00:14:21,520 SIGNED THEN I THINK WE COULD 408 00:14:21,520 --> 00:14:23,800 IMPROVE THESE PAYLINES AND ALSO 409 00:14:23,800 --> 00:14:25,880 THE ISSUE ABOUT THE CUT TO 410 00:14:25,880 --> 00:14:27,080 NON-COMPETING RENEWALS. 411 00:14:27,080 --> 00:14:29,440 RIGHT NOW WE'RE PAYING THOSE AT 412 00:14:29,440 --> 00:14:31,600 90% OF PRIOR YEAR FUNDING, VERY 413 00:14:31,600 --> 00:14:32,440 HARD ON INVESTIGATORS, SO I 414 00:14:32,440 --> 00:14:35,440 BELIEVE WE'LL BE ABLE TO RESTORE 415 00:14:35,440 --> 00:14:38,200 SOME CUTS AND IMPROVE PAYLINES, 416 00:14:38,200 --> 00:14:41,280 KEEPING IN MIND FOR 2021 OUR 417 00:14:41,280 --> 00:14:42,560 ESTABLISHED INVESTIGATOR PAYLINE 418 00:14:42,560 --> 00:14:42,800 WAS 11%. 419 00:14:42,800 --> 00:14:44,440 SO 9% IS A LOT LOWER THAN THAT. 420 00:14:44,440 --> 00:14:47,200 WE'D LIKE TO BE CLOSER TO WHERE 421 00:14:47,200 --> 00:14:48,080 WE WERE IN 21. 422 00:14:48,080 --> 00:14:50,080 BUT WE'LL SEE, YOU KNOW, WE NOW 423 00:14:50,080 --> 00:14:51,360 HAVE TO WORK THROUGH THE BUDGET 424 00:14:51,360 --> 00:14:54,000 AND SEE WHAT WE CAN AFFORD AND 425 00:14:54,000 --> 00:14:58,400 WE'LL BE UPDATING OUR PAYLINES 426 00:14:58,400 --> 00:14:58,680 VERY SOON. 427 00:14:58,680 --> 00:15:00,280 NEXT SLIDE. 428 00:15:00,280 --> 00:15:01,280 AS I MENTIONED, THERE'S STRONG 429 00:15:01,280 --> 00:15:03,400 BIPARTISAN SUPPORT FOR THE NCI. 430 00:15:03,400 --> 00:15:06,400 I WANT TO POINT OUT TWO RECENT 431 00:15:06,400 --> 00:15:08,800 OP EDS THAT HAVE BEEN VERY 432 00:15:08,800 --> 00:15:11,880 IMPORTANT IN THE NATIONAL 433 00:15:11,880 --> 00:15:14,840 CONVERSATION, SCIENTIFIC 434 00:15:14,840 --> 00:15:18,600 AMERICAN ARTICLE FROM DECEMBER, 435 00:15:18,600 --> 00:15:19,560 BIPARTISAN APPROPRIATORS WHO 436 00:15:19,560 --> 00:15:21,280 BELIEVE THE CANCER RESEARCH AND 437 00:15:21,280 --> 00:15:23,920 NCI FUNDING IS A VERY GOOD USE 438 00:15:23,920 --> 00:15:24,920 OF FEDERAL MONIES. 439 00:15:24,920 --> 00:15:26,000 AND HOW THEY HAVE UNDERSTOOD OUR 440 00:15:26,000 --> 00:15:27,320 PROBLEM AT THE NCI THAT WE HAVE 441 00:15:27,320 --> 00:15:30,160 A LOT OF GREAT PROPOSALS FOR 442 00:15:30,160 --> 00:15:30,920 SCIENTIFIC FUNDING THAT WEREN'T 443 00:15:30,920 --> 00:15:34,280 ABLE TO FUND BECAUSE OF OUR VERY 444 00:15:34,280 --> 00:15:35,040 LOW PAYLINES. 445 00:15:35,040 --> 00:15:38,160 SO THESE AND OTHER MEMBERS OF 446 00:15:38,160 --> 00:15:39,600 CONGRESS HAVE ASKED TO DO 447 00:15:39,600 --> 00:15:41,040 SOMETHING ABOUT IT THROUGH 448 00:15:41,040 --> 00:15:43,240 INCREASED APPROPRIATION, ON THE 449 00:15:43,240 --> 00:15:45,640 ORDER OF A BILLION-DOLLAR BOOST 450 00:15:45,640 --> 00:15:48,280 IS THE NUMBER THEY USED. 451 00:15:48,280 --> 00:15:57,080 ON THE RIGHT CARYN LERMAM, AND 452 00:15:57,080 --> 00:15:59,640 ROB WINN, WHO WROTE A VERY NICE 453 00:15:59,640 --> 00:16:01,600 OP ED ABOUT THE FEED FOR 454 00:16:01,600 --> 00:16:04,880 CONTINUED FUNDING FOR CANCER 455 00:16:04,880 --> 00:16:13,000 RESEARCH. 456 00:16:13,000 --> 00:16:16,920 CITE A 2020 REPORT, SORT OF 457 00:16:16,920 --> 00:16:18,880 PROVIDING PERSPECTIVE THE NCI 458 00:16:18,880 --> 00:16:20,520 BUDGET IS VERY SMALL RELATIVE TO 459 00:16:20,520 --> 00:16:23,000 THE SIZE OF THE PROBLEM IT SEEKS 460 00:16:23,000 --> 00:16:24,160 TO ADDRESS. 461 00:16:24,160 --> 00:16:27,880 AND WE THINK THAT'S A COMPELLING 462 00:16:27,880 --> 00:16:28,160 ARGUMENT. 463 00:16:28,160 --> 00:16:34,040 WE'RE ENCOURAGED TO SEE THE $353 464 00:16:34,040 --> 00:16:35,000 MILLION INCREASE THAT'S 465 00:16:35,000 --> 00:16:37,360 SUGGESTED IN THE OMNIBUS, 466 00:16:37,360 --> 00:16:38,960 GREATFUL FOR SUPPORT FROM 467 00:16:38,960 --> 00:16:40,680 COMMUNITY AND CONGRESS THIS 468 00:16:40,680 --> 00:16:41,440 REFLECTS. 469 00:16:41,440 --> 00:16:41,920 NEXT SLIDE. 470 00:16:41,920 --> 00:16:44,000 ALSO VERY IMPORTANT IN THE NEWS 471 00:16:44,000 --> 00:16:45,600 LAST MONTH PRESIDENT BIDEN 472 00:16:45,600 --> 00:16:52,800 ANNOUNCED PLAN TO SUPER CHARGE 473 00:16:52,800 --> 00:16:55,000 CANCER MOONSHOT AND REIT RATED 474 00:16:55,000 --> 00:16:58,760 THIS, AGAIN IN THE STATE OF THE 475 00:16:58,760 --> 00:17:01,000 UNION ADDRESS, WE KNEW THIS WAS 476 00:17:01,000 --> 00:17:03,000 A TOP DOMESTIC PRIORITY BUT TO 477 00:17:03,000 --> 00:17:03,880 HAVE HIM CONVENE THIS LARGE 478 00:17:03,880 --> 00:17:05,200 GROUP IN THE EAST WING OF THE 479 00:17:05,200 --> 00:17:06,840 WHITE HOUSE AND BRING THESE 480 00:17:06,840 --> 00:17:08,240 MEMBERS OF THE CABINET AND 481 00:17:08,240 --> 00:17:11,640 MEMBERS OF CONGRESS AND TERRIFIC 482 00:17:11,640 --> 00:17:16,560 CANCER ADVOCATES AND LEADERS AND 483 00:17:16,560 --> 00:17:17,760 TALK ABOUT THIS NEED WITH THE 484 00:17:17,760 --> 00:17:23,640 VICE PRESIDENT AND FIRST LADY 485 00:17:23,640 --> 00:17:24,400 WAS GALVANIZING, A KICKOFF TO 486 00:17:24,400 --> 00:17:26,280 THE NEXT PHASE OF THE MOONSHOT. 487 00:17:26,280 --> 00:17:28,280 IMPORTANT TO NOTE THE INITIAL 488 00:17:28,280 --> 00:17:31,320 MOONSHOT BEGAN IN 2016 WITH 489 00:17:31,320 --> 00:17:32,400 APPROPRIATION FOR 21ST CENTURY 490 00:17:32,400 --> 00:17:34,880 CURES, AND ABLY LED BY DINAH 491 00:17:34,880 --> 00:17:37,400 SINGER, PROVIDING A GREAT 492 00:17:37,400 --> 00:17:38,280 PLATFORM OF INITIATIVES IN 493 00:17:38,280 --> 00:17:39,600 SCIENCE AND RESEARCH ON WHICH WE 494 00:17:39,600 --> 00:17:42,360 CAN BUILD THE NEXT PHASE OF THE 495 00:17:42,360 --> 00:17:43,000 MOONSHOT. 496 00:17:43,000 --> 00:17:43,640 WE HAVE COMPLETE CONFIDENCE THAT 497 00:17:43,640 --> 00:17:45,880 PRESIDENT BIDEN WILL TAKE THE 498 00:17:45,880 --> 00:17:47,800 NECESSARY STEPS TO ENSURE THAT 499 00:17:47,800 --> 00:17:49,640 THIS AGENDA FOR CANCER RESEARCH 500 00:17:49,640 --> 00:17:51,200 STAYS ON TRACK TO CHANGE THE 501 00:17:51,200 --> 00:17:52,480 EXPERIENCE OF CANCER FOR OUR 502 00:17:52,480 --> 00:17:53,360 PATIENTS. 503 00:17:53,360 --> 00:17:56,000 HE TALKED ABOUT A WHOLE OF 504 00:17:56,000 --> 00:17:57,320 GOVERNMENT APPROACH, SOMETHING 505 00:17:57,320 --> 00:18:01,280 THAT'S BIGGER THAN THE NATIONAL 506 00:18:01,280 --> 00:18:03,200 CANCER INSTITUTE. 507 00:18:03,200 --> 00:18:04,880 HE MENTIONED A CANCER CABINET, 508 00:18:04,880 --> 00:18:07,360 I'M HONORED TO BE PART OF THAT, 509 00:18:07,360 --> 00:18:09,680 BRINGING TOGETHER AGENCIES TO 510 00:18:09,680 --> 00:18:10,960 DISCUSS STUDENTS OF 511 00:18:10,960 --> 00:18:11,880 OPPORTUNITIES, INCLUDING HHS, 512 00:18:11,880 --> 00:18:14,800 NIH, NCI, DEPARTMENT OF ENERGY, 513 00:18:14,800 --> 00:18:18,280 DEPARTMENT OF DEFENSE, CMS, 514 00:18:18,280 --> 00:18:22,200 OSTP, CDC, FDA, EPA, ET CETERA. 515 00:18:22,200 --> 00:18:24,360 SO A BOLD VISION TO CENTRALIZE 516 00:18:24,360 --> 00:18:26,000 AND PLAN CANCER RESEARCH 517 00:18:26,000 --> 00:18:27,200 THROUGHOUT THE FEDERAL 518 00:18:27,200 --> 00:18:27,760 GOVERNMENT. 519 00:18:27,760 --> 00:18:29,240 AND IS THE CANCER CABINET THAT 520 00:18:29,240 --> 00:18:31,200 WILL BE MEETING SOON FOR KICKOFF 521 00:18:31,200 --> 00:18:32,360 MEETING, I'M VERY EXCITED FOR 522 00:18:32,360 --> 00:18:34,880 THAT TO TAKE OFF. 523 00:18:34,880 --> 00:18:35,880 NEXT SLIDE. 524 00:18:35,880 --> 00:18:37,520 THE PRESIDENT ANNOUNCED IN 525 00:18:37,520 --> 00:18:38,480 ADDITION TO CANCER CABINET A FEW 526 00:18:38,480 --> 00:18:40,160 GOALS OF THE SUPER CHARGED 527 00:18:40,160 --> 00:18:40,720 CANCER MOONSHOT. 528 00:18:40,720 --> 00:18:43,080 ONE THAT I THINK IS VERY GOOD 529 00:18:43,080 --> 00:18:45,520 GOAL BECAUSE IT'S VERY 530 00:18:45,520 --> 00:18:47,160 MEASURABLE IS THIS NOTION TO 531 00:18:47,160 --> 00:18:49,800 REDUCE CANCER MORTALITY ON THE 532 00:18:49,800 --> 00:18:56,200 ORDER OF 50% IN 25 YEARS. 533 00:18:56,200 --> 00:18:58,000 THAT'S REDUCTION FROM 146 DEATHS 534 00:18:58,000 --> 00:19:01,200 PER 100,000 TODAY TO 73 DEATHS 535 00:19:01,200 --> 00:19:03,320 PER 100,000 INDIVIDUALS IN THE 536 00:19:03,320 --> 00:19:04,400 FUTURE, THAT'S AGE ADJUSTED 537 00:19:04,400 --> 00:19:06,560 MORTALITY TO ACCOUNT FOR CHANGES 538 00:19:06,560 --> 00:19:09,400 IN AMERICAN DEMOGRAPHICS. 539 00:19:09,400 --> 00:19:10,600 AND THAT WOULD MAKE CANCER A 540 00:19:10,600 --> 00:19:13,200 MUCH LESS OF A BURDEN ON 541 00:19:13,200 --> 00:19:14,880 AMERICAN SOCIETY, A HUGE 542 00:19:14,880 --> 00:19:17,840 REDUCTION IN CANCER MORTALITY, A 543 00:19:17,840 --> 00:19:19,280 HUGE STEP TOWARDS CHANGING THE 544 00:19:19,280 --> 00:19:20,360 NATIONAL EXPERIENCE OF CANCER 545 00:19:20,360 --> 00:19:21,880 AND THERE BY ENDING CANCER AS WE 546 00:19:21,880 --> 00:19:22,640 KNOW IT. 547 00:19:22,640 --> 00:19:23,760 CERTAINLY THERE'S NO SINGLE WAY 548 00:19:23,760 --> 00:19:25,840 TO DO THAT KIND OF REDUCTION IN 549 00:19:25,840 --> 00:19:28,000 MORTALITY THAT. 550 00:19:28,000 --> 00:19:31,520 WOULD REFLECT MANY AREAS OF 551 00:19:31,520 --> 00:19:32,400 CANCER PROGRESS, LIKE 552 00:19:32,400 --> 00:19:34,320 PREVENTION, SCREENING, BETTER 553 00:19:34,320 --> 00:19:35,800 THERAPIES, CONTINUED SUCCESS IN 554 00:19:35,800 --> 00:19:38,840 TOBACCO CONTROL, LOTS OF OVER 555 00:19:38,840 --> 00:19:44,600 STUFF. -- OTHER STUFF. 556 00:19:44,600 --> 00:19:47,280 CANCER MORTALITY HAS DECLINED 557 00:19:47,280 --> 00:19:48,640 SINCE THE '90s, A TRAJECTORY 558 00:19:48,640 --> 00:19:50,800 TO BUILT BUT WE HAVE TO FURTHER 559 00:19:50,800 --> 00:19:52,200 ACCELERATE PROGRESS, THAT'S WHAT 560 00:19:52,200 --> 00:19:54,280 THE WHITE HOUSE IS ASKING US TO 561 00:19:54,280 --> 00:19:54,560 DO. 562 00:19:54,560 --> 00:19:57,680 I THINK HAVING -- VIEWING THIS 563 00:19:57,680 --> 00:19:59,560 EFFORT THROUGH A HARD METRIC 564 00:19:59,560 --> 00:20:00,200 LIKE AGE-ADJUSTED CANCER MOTHER 565 00:20:00,200 --> 00:20:06,000 AT -- MORTALITY THAT IS 566 00:20:06,000 --> 00:20:07,200 MEASURED EVERY YEAR I THINK IS A 567 00:20:07,200 --> 00:20:11,680 GREAT WAY TO THINK ABOUT CANCER 568 00:20:11,680 --> 00:20:11,960 MOONSHOT. 569 00:20:11,960 --> 00:20:13,960 NEXT SLIDE. 570 00:20:13,960 --> 00:20:17,040 SO HERE'S -- JUST TALKING ABOUT 571 00:20:17,040 --> 00:20:18,280 THE PRISM OF MORTALITY, CANCER 572 00:20:18,280 --> 00:20:21,320 MORTALITY FOR A MOMENT LONGER, I 573 00:20:21,320 --> 00:20:23,600 MENTIONED THIS PROGRESS WE MADE 574 00:20:23,600 --> 00:20:32,440 IN TERMS OF AGE-ADJUSTED 575 00:20:32,440 --> 00:20:32,800 MORTALITY. 576 00:20:32,800 --> 00:20:34,600 [AUDIO DISTORTION] 577 00:20:34,600 --> 00:20:38,120 A VISUAL DISPLAY SINCE 2005. 578 00:20:38,120 --> 00:20:40,000 YOU SEE THE IMPRESSIVE 579 00:20:40,000 --> 00:20:42,160 IMPROVEMENT IN EVERY STATE IN 580 00:20:42,160 --> 00:20:43,920 THE NATION, CANCER MORTALITY 581 00:20:43,920 --> 00:20:45,360 DECLINED IN THE LAST 15 YEARS. 582 00:20:45,360 --> 00:20:46,200 WITH A FEW EXCEPTIONS. 583 00:20:46,200 --> 00:20:47,720 THERE ARE A FEW STATES WHERE 584 00:20:47,720 --> 00:20:51,000 PROGRESS HAS NOT BEEN AS GOOD, 585 00:20:51,000 --> 00:20:53,000 AND THAT'S AN INTERESTING 586 00:20:53,000 --> 00:20:54,400 OBSERVATION, WHY CANCER 587 00:20:54,400 --> 00:20:56,920 MORTALITY HAS LAGGED TO SOME 588 00:20:56,920 --> 00:20:57,840 EXTENT IN CERTAIN GEOGRAPHIES 589 00:20:57,840 --> 00:20:59,720 VERSUS OTHER PARTS OF THE 590 00:20:59,720 --> 00:21:00,520 COUNTRY. 591 00:21:00,520 --> 00:21:01,520 NEXT SLIDE. 592 00:21:01,520 --> 00:21:03,880 BUT THIS IS -- WHEN YOU THINK 593 00:21:03,880 --> 00:21:05,560 ABOUT INTERACTION BETWEEN 594 00:21:05,560 --> 00:21:06,600 MORTALITY AND GEOGRAPHY THAT'S 595 00:21:06,600 --> 00:21:08,640 EVEN MORE INTERESTING WHEN YOU 596 00:21:08,640 --> 00:21:10,840 BREAK IT OUT BY RACE AND 597 00:21:10,840 --> 00:21:11,480 ETHNICITY. 598 00:21:11,480 --> 00:21:12,920 A BIG PART OF ENDING CANCER AS 599 00:21:12,920 --> 00:21:16,200 WE KNOW IT IS ENDING CANCER FOR 600 00:21:16,200 --> 00:21:19,800 ALL AMERICANS, REGARDLESS OF 601 00:21:19,800 --> 00:21:20,800 WEALTH, ACCESS, RACE, EDUCATION, 602 00:21:20,800 --> 00:21:23,520 AND BARRIERS TO CARE. 603 00:21:23,520 --> 00:21:25,920 SO REALLY ENDING CANCER IS ABOUT 604 00:21:25,920 --> 00:21:27,360 PROMOTING HEALTH EQUITY IN LARGE 605 00:21:27,360 --> 00:21:27,880 PART. 606 00:21:27,880 --> 00:21:29,760 I THINK THIS SORT OF ANALYSIS 607 00:21:29,760 --> 00:21:31,840 HELPS ONE THINK ABOUT WHAT THAT 608 00:21:31,840 --> 00:21:33,000 WOULD MEAN. 609 00:21:33,000 --> 00:21:35,400 I THINK THESE -- BREAKING OUT 610 00:21:35,400 --> 00:21:36,600 CANCER MORTALITY BY RACE AND 611 00:21:36,600 --> 00:21:37,600 ETHNICITY MAKES INTERESTING 612 00:21:37,600 --> 00:21:37,800 POINTS. 613 00:21:37,800 --> 00:21:39,760 YOU CAN SEE THERE ARE AREAS OF 614 00:21:39,760 --> 00:21:41,080 THE COUNTRY THAT HAVE NOT DONE 615 00:21:41,080 --> 00:21:43,600 AS WELL AS OTHER PARTS, STRONG 616 00:21:43,600 --> 00:21:44,720 INTERACTION BETWEEN GEOGRAPHY 617 00:21:44,720 --> 00:21:45,760 AND RACE AND MORTALITY. 618 00:21:45,760 --> 00:21:47,840 YOU CAN SEE FOR ALL RACES 619 00:21:47,840 --> 00:21:50,160 THERE'S BEEN IMPROVEMENT, BUT 620 00:21:50,160 --> 00:21:51,360 NOT NECESSARILY THE SAME RATES, 621 00:21:51,360 --> 00:21:53,080 THAT SOME STATES AND SOME RACES 622 00:21:53,080 --> 00:21:54,840 HAVE HAD MORE IMPROVEMENTS THAN 623 00:21:54,840 --> 00:21:56,000 OTHERS, THAT'S AN INTERESTING 624 00:21:56,000 --> 00:21:56,600 QUESTION WHY. 625 00:21:56,600 --> 00:22:00,000 ONE THING I FIND PARTICULARLY 626 00:22:00,000 --> 00:22:01,400 INTERESTING IS THE NON-HISPANIC 627 00:22:01,400 --> 00:22:02,400 AMERICAN INDIAN AND ALASKA 628 00:22:02,400 --> 00:22:06,320 NATIVE DATA SHOWN SECOND FROM 629 00:22:06,320 --> 00:22:10,160 THE LEFT SET OF MAPS. 630 00:22:10,160 --> 00:22:11,560 YOU SEE TREMENDOUS 631 00:22:11,560 --> 00:22:13,400 HETEROGENEITY, SOME TRIBAL 632 00:22:13,400 --> 00:22:14,200 NATIONS AND AMERICAN INDIAN 633 00:22:14,200 --> 00:22:15,600 POPULATIONS DO QUITE WELL IN 634 00:22:15,600 --> 00:22:17,000 TERMS OF CANCER MORTALITY, 635 00:22:17,000 --> 00:22:18,360 OTHERS DO VERY POORLY. 636 00:22:18,360 --> 00:22:21,000 AND SO WHAT EXPLAINS THIS 637 00:22:21,000 --> 00:22:22,800 AMAZING HETEROGENEITY THAT YOU 638 00:22:22,800 --> 00:22:23,480 WOULDN'T APPRECIATE FROM 639 00:22:23,480 --> 00:22:24,800 AGGREGATE STATISTICS? 640 00:22:24,800 --> 00:22:26,240 THIS IS THE KIND OF THING THE 641 00:22:26,240 --> 00:22:29,440 NCI NEEDS TO BE DOING TO REALLY 642 00:22:29,440 --> 00:22:30,000 UNDERSTAND CANCER MORTALITY 643 00:22:30,000 --> 00:22:31,920 DISPARITIES, WE HAVE TO 644 00:22:31,920 --> 00:22:33,440 UNDERSTAND WHAT CAUSES THESE AND 645 00:22:33,440 --> 00:22:35,200 WHAT DRIVES THEM AND WHAT ARE 646 00:22:35,200 --> 00:22:37,000 THE BARRIERS THAT CAUSE THEM TO 647 00:22:37,000 --> 00:22:38,920 PERSIST AND THERE BY HOW DO WE 648 00:22:38,920 --> 00:22:41,000 ADDRESS THEM. 649 00:22:41,000 --> 00:22:41,960 NEXT SLIDE. 650 00:22:41,960 --> 00:22:42,800 SO WORKING WITH COLLEAGUES IN 651 00:22:42,800 --> 00:22:44,400 THE WHITE HOUSE WE THOUGHT ABOUT 652 00:22:44,400 --> 00:22:46,160 WHAT IT WOULD MEAN TO END CANCER 653 00:22:46,160 --> 00:22:47,520 AS WE KNOW IT. 654 00:22:47,520 --> 00:22:49,280 I MENTIONED THE FRAME OF 655 00:22:49,280 --> 00:22:51,600 MORTALITY, THAT'S NOT THE ONLY 656 00:22:51,600 --> 00:22:53,440 WAY TO THINK ABOUT THE PROBLEM. 657 00:22:53,440 --> 00:22:57,160 HERE ARE OTHER WAYS THAT THE 658 00:22:57,160 --> 00:22:58,360 WHITE HOUSE AND OSTP WOULD LIKE 659 00:22:58,360 --> 00:22:59,800 US TO THINK ABOUT THE NATIONAL 660 00:22:59,800 --> 00:23:02,280 EXPERIENCE OF CANCER, NOT A 661 00:23:02,280 --> 00:23:04,600 COMPLETE LIST, THIS IS NOT THE 662 00:23:04,600 --> 00:23:06,200 ONLY THINGS WE'RE CARE ABOUT. 663 00:23:06,200 --> 00:23:08,640 IT WILL BE BROADER BUT THIS IS A 664 00:23:08,640 --> 00:23:10,360 GOOD START, SORT OF THINGS ONE 665 00:23:10,360 --> 00:23:11,800 SHOULD CONSIDER WHEN DESCRIBING 666 00:23:11,800 --> 00:23:14,120 THE NATIONAL CONVERSATION OF 667 00:23:14,120 --> 00:23:17,600 CANCER, THINGS LIKE DIAGNOSIS OF 668 00:23:17,600 --> 00:23:20,640 CANCER, PREVENTION, ADDRESSING 669 00:23:20,640 --> 00:23:21,160 INEQUITIES, PERSONALIZED 670 00:23:21,160 --> 00:23:21,760 MEDICINE, TARGETING THE RIGHT 671 00:23:21,760 --> 00:23:22,640 TREATMENT TO THE RIGHT PATIENT, 672 00:23:22,640 --> 00:23:23,880 ET CETERA. 673 00:23:23,880 --> 00:23:26,720 I WON'T READ ALL HERE BUT THIS 674 00:23:26,720 --> 00:23:29,320 IS TO EMPHASIZE THE POINT WE'RE 675 00:23:29,320 --> 00:23:35,880 THINKING ABOUT MORTALITY, A 676 00:23:35,880 --> 00:23:36,600 MEASURABLE AND IMPORTANT METRIC 677 00:23:36,600 --> 00:23:37,800 OTHER WAYS TO MEASURE PROGRESS 678 00:23:37,800 --> 00:23:44,320 AND MAKE PROGRESS IN THOSE 679 00:23:44,320 --> 00:23:44,520 AREAS. 680 00:23:44,520 --> 00:23:45,000 NEXT SLIDE. 681 00:23:45,000 --> 00:23:46,400 ONE THING THE PRESIDENT HAS BEEN 682 00:23:46,400 --> 00:23:50,400 FOCUSED ON, FIRST LADY AS WELL, 683 00:23:50,400 --> 00:23:52,360 ISSUE OF PREVENTION SCREENING 684 00:23:52,360 --> 00:23:53,600 AND EARLY DETECTION, MENTIONING 685 00:23:53,600 --> 00:23:55,200 THIS IN THIS IS EVENT ON 686 00:23:55,200 --> 00:23:58,360 FEBRUARY 2 IN THE WHITE HOUSE. 687 00:23:58,360 --> 00:24:01,080 WE'VE HAD ON THE ORDER OF 10 688 00:24:01,080 --> 00:24:02,520 MILLION MISSED SCREENING EVENTS 689 00:24:02,520 --> 00:24:05,160 FOR CANCER DURING THE PANDEMIC 690 00:24:05,160 --> 00:24:05,880 PERIOD. 691 00:24:05,880 --> 00:24:07,360 THESE ARE MAMMOGRAMS, CERVICAL 692 00:24:07,360 --> 00:24:10,800 CANCER SCREENING, LUNG CANCER 693 00:24:10,800 --> 00:24:11,720 SCREENING, COLORECTAL CANCER 694 00:24:11,720 --> 00:24:12,000 SCREENING. 695 00:24:12,000 --> 00:24:15,320 SHOWN ON THE RIGHT HERE IS THAT 696 00:24:15,320 --> 00:24:18,160 GRAPH FOR COLON CANCER 697 00:24:18,160 --> 00:24:19,800 SCREENING, DRAMATIC PLUMMETING 698 00:24:19,800 --> 00:24:20,960 OF COLONOSCOPIES, FOR EXAMPLE, 699 00:24:20,960 --> 00:24:23,320 IN MARCH, APRIL, MAY OF 2020. 700 00:24:23,320 --> 00:24:24,840 AND SOME RECOVERY BUT STILL NOT 701 00:24:24,840 --> 00:24:25,920 COMPLETE RECOVERY IN THE UNITED 702 00:24:25,920 --> 00:24:26,400 STATES. 703 00:24:26,400 --> 00:24:30,400 WE STILL HAVE A LAGGING IN TERMS 704 00:24:30,400 --> 00:24:31,600 OF CANCER CARRY, INCLUDING 705 00:24:31,600 --> 00:24:33,520 IMPORTANT SCREENING EVENTS. 706 00:24:33,520 --> 00:24:35,400 SO HOW TO GET PEOPLE BACK ON 707 00:24:35,400 --> 00:24:37,680 TRACK IN TERMS OF CANCER CARE 708 00:24:37,680 --> 00:24:39,560 AND SCREENING IS AN IMPORTANT 709 00:24:39,560 --> 00:24:41,920 THING TO DISCUSS RIGHT NOW. 710 00:24:41,920 --> 00:24:43,920 AND WE HAVE A LOT OF THOUGHTS ON 711 00:24:43,920 --> 00:24:44,240 THIS. 712 00:24:44,240 --> 00:24:46,800 SO WE THOUGHT ABOUT ARE THERE 713 00:24:46,800 --> 00:24:48,840 WAYS TO DO CANCER SCREENING, 714 00:24:48,840 --> 00:24:51,960 AT-HOME SCREENING FOR COLON 715 00:24:51,960 --> 00:24:53,920 CANCER OR HPV, CERVICAL CANCER, 716 00:24:53,920 --> 00:24:55,000 MOBILE SCREENING IN THE 717 00:24:55,000 --> 00:24:56,800 COMMUNITIES WITHOUT EASY ACCESS 718 00:24:56,800 --> 00:24:58,680 TO CLINIC OR USE OF COMMUNITY 719 00:24:58,680 --> 00:24:59,400 HEALTH NETWORKS. 720 00:24:59,400 --> 00:25:01,000 THE MOONSHOT HAVING A 721 00:25:01,000 --> 00:25:01,680 TRANSGOVERNMENT APPROACH WILL 722 00:25:01,680 --> 00:25:02,440 ALLOW OPPORTUNITIES TO THINK 723 00:25:02,440 --> 00:25:04,080 ABOUT NEW WAYS THE NCI CAN WORK 724 00:25:04,080 --> 00:25:06,600 WITH OTHER PARTS OF GOVERNMENT 725 00:25:06,600 --> 00:25:09,080 TO FACILITATE CANCER SCREENING. 726 00:25:09,080 --> 00:25:10,600 AND IMPORTANTLY, THE PRESIDENT'S 727 00:25:10,600 --> 00:25:12,720 CANCER PANEL RELEASED A REPORT 728 00:25:12,720 --> 00:25:14,560 ON INEQUITIES IN CANCER 729 00:25:14,560 --> 00:25:15,560 SCREENING, IDENTIFIED SOME 730 00:25:15,560 --> 00:25:17,600 REALLY IMPORTANT GAPS AND 731 00:25:17,600 --> 00:25:18,720 BARRIERS, THINGS LIKE KNOWLEDGE 732 00:25:18,720 --> 00:25:20,360 OF THE GUIDELINES, SOME 733 00:25:20,360 --> 00:25:23,400 PHYSICIANS DON'T REALLY -- 734 00:25:23,400 --> 00:25:25,160 CAREGIVERS DON'T APPRECIATE WHEN 735 00:25:25,160 --> 00:25:26,480 SCREENING IS INDICATED, AND 736 00:25:26,480 --> 00:25:27,400 FEARS ABOUT MEDICAL PROCEDURES 737 00:25:27,400 --> 00:25:29,680 THAT MAY OR MAY NOT BE VALID 738 00:25:29,680 --> 00:25:33,240 CONCERNS IN SOME PATIENT 739 00:25:33,240 --> 00:25:33,560 POPULATIONS. 740 00:25:33,560 --> 00:25:34,320 OFTEN PROVIDERS DON'T RECOMMEND 741 00:25:34,320 --> 00:25:37,840 INDICATED SCREENING, HOW DO WE 742 00:25:37,840 --> 00:25:39,800 CHANGE THAT. 743 00:25:39,800 --> 00:25:41,440 THIS PROVIDES AN OPPORTUNITY TO 744 00:25:41,440 --> 00:25:42,920 ADDRESS CANCER MORTALITY AND 745 00:25:42,920 --> 00:25:43,840 PROMOTE HEALTH EQUITY WHERE THE 746 00:25:43,840 --> 00:25:45,800 NCI BELIEVES WE CAN DO MORE AND 747 00:25:45,800 --> 00:25:48,360 WE'RE EAGER TO WORK WITH OTHER 748 00:25:48,360 --> 00:25:49,800 PARTS OF GOVERNMENT. 749 00:25:49,800 --> 00:25:51,960 KATRINA GODDARD WILL TALK ABOUT 750 00:25:51,960 --> 00:25:54,680 THE PCP REPORT. 751 00:25:54,680 --> 00:25:55,320 NEXT SLIDE. 752 00:25:55,320 --> 00:25:57,560 ONE OF THE THINGS THE NCI IS 753 00:25:57,560 --> 00:25:59,480 WORRIED ABOUT SINCE BASICALLY 754 00:25:59,480 --> 00:26:01,000 MARCH OF 2020, IT OCCURRED TO US 755 00:26:01,000 --> 00:26:02,760 THAT PEOPLE WERE GOING TO MISS 756 00:26:02,760 --> 00:26:04,000 CANCER CARE BECAUSE OF THE 757 00:26:04,000 --> 00:26:04,240 PANDEMIC. 758 00:26:04,240 --> 00:26:06,720 AND WE DID SOME MODELING AND 759 00:26:06,720 --> 00:26:08,720 REQUIRED SOME DATA FOR THE 760 00:26:08,720 --> 00:26:11,200 CANCER DATA, CLEAR THIS WAS 761 00:26:11,200 --> 00:26:12,480 HAPPENING, AND IT'S SORT OF 762 00:26:12,480 --> 00:26:14,920 LIKE, YOU KNOW, WATCHING A 763 00:26:14,920 --> 00:26:16,680 HORROR MOVIE, YOU KNOW WHAT'S 764 00:26:16,680 --> 00:26:18,960 GOING TO HAPPEN BUT THERE'S A 765 00:26:18,960 --> 00:26:19,960 HELPLESS FEELING YOU CAN'T DO 766 00:26:19,960 --> 00:26:21,240 MUCH ABOUT IT BECAUSE WE KNOW IF 767 00:26:21,240 --> 00:26:30,640 MARTIN -- IF MILLIONS FORGO, IT 768 00:26:30,640 --> 00:26:33,400 WILL BE POTENTIALLY WORSE 769 00:26:33,400 --> 00:26:35,920 OUTCOME, THINGS WE CAN DO TO 770 00:26:35,920 --> 00:26:37,920 AVERT THE PROBLEM TO THE EXTENT 771 00:26:37,920 --> 00:26:38,240 POSSIBLE. 772 00:26:38,240 --> 00:26:39,920 ONE REAL FRIEND OF THIS EFFORT 773 00:26:39,920 --> 00:26:41,960 AS WE FOUND HAS BEEN THE FIRST 774 00:26:41,960 --> 00:26:43,400 LADY'S OFFICE, VERY INTERESTED 775 00:26:43,400 --> 00:26:45,240 IN TALKING ABOUT THIS ISSUE 776 00:26:45,240 --> 00:26:46,640 NATIONALLY, AND HAS DONE A LOT 777 00:26:46,640 --> 00:26:47,640 IN THIS REGARD. 778 00:26:47,640 --> 00:26:51,480 YOU CAN SEE VISITS THAT SHE AND 779 00:26:51,480 --> 00:26:53,120 I HAVE MADE TO CHARLESTON, SOUTH 780 00:26:53,120 --> 00:26:56,840 CAROLINA, TO TAMPA, TO RICHMOND, 781 00:26:56,840 --> 00:26:59,160 TO -- SHE WENT ON GOOD MORNING 782 00:26:59,160 --> 00:27:01,520 AMERICA, IN ARIZONA YESTERDAY, 783 00:27:01,520 --> 00:27:02,840 HAS BEEN CARRYING -- AND SAN 784 00:27:02,840 --> 00:27:04,720 ANTONIO CARRYING THIS MESSAGE 785 00:27:04,720 --> 00:27:06,200 NATIONALLY ABOUT THE VIRTUES OF 786 00:27:06,200 --> 00:27:08,960 SCREENING, NEED TO RETURN TO 787 00:27:08,960 --> 00:27:10,680 SCREENING AFTER THE PANDEMIC, 788 00:27:10,680 --> 00:27:12,760 AND TRYING TO HELP PEOPLE 789 00:27:12,760 --> 00:27:13,800 UNDERSTAND WHY THERE ARE 790 00:27:13,800 --> 00:27:15,120 BARRIERS AND HOW WE CAN DO 791 00:27:15,120 --> 00:27:19,480 THINGS ABOUT THAT, IT'S BEEN A 792 00:27:19,480 --> 00:27:20,720 WONDERFUL COLLABORATION. 793 00:27:20,720 --> 00:27:21,880 AND I THINK THE MEGAPHONE THAT 794 00:27:21,880 --> 00:27:24,200 THE WHITE HOUSE HAS FOR 795 00:27:24,200 --> 00:27:25,760 COMMUNICATIONS HAS BEEN REALLY 796 00:27:25,760 --> 00:27:29,320 USEFUL IN THIS REGARD. 797 00:27:29,320 --> 00:27:30,400 NEXT SLIDE. 798 00:27:30,400 --> 00:27:32,720 ANOTHER THING THE PRESIDENT 799 00:27:32,720 --> 00:27:33,880 SPECIFICALLY MENTIONED IN HIS 800 00:27:33,880 --> 00:27:36,480 REMARKS AT THE KICKOFF EVENT FOR 801 00:27:36,480 --> 00:27:38,560 THE MOONSHOT WAS INTEREST IN 802 00:27:38,560 --> 00:27:40,200 THIS SPECIFIC TECHNOLOGY, 803 00:27:40,200 --> 00:27:41,280 MULTI-CANCER EARLY DETECTION 804 00:27:41,280 --> 00:27:41,800 TESTS. 805 00:27:41,800 --> 00:27:43,240 THERE'S TREMENDOUS INTEREST IN 806 00:27:43,240 --> 00:27:44,440 THIS TOPIC ACROSS THE FEDERAL 807 00:27:44,440 --> 00:27:45,000 GOVERNMENT. 808 00:27:45,000 --> 00:27:48,160 V.A. IS INTERESTED IN THIS. 809 00:27:48,160 --> 00:27:49,920 DoD AND ANY POPULATION THAT 810 00:27:49,920 --> 00:27:51,360 HAS A CANCER SCREENING IS PART 811 00:27:51,360 --> 00:27:52,720 OF THIS MANDATE. 812 00:27:52,720 --> 00:27:53,760 THESE ARE TESTS WITH POTENTIAL 813 00:27:53,760 --> 00:27:57,840 TO SCREEN FOR MANY CANCERS 814 00:27:57,840 --> 00:28:01,160 SIMULTANEOUSLY USING SINGLE 815 00:28:01,160 --> 00:28:02,360 BLOOD-BASED ASSAY IN AN 816 00:28:02,360 --> 00:28:03,680 OTHERWISE HEALTHY INDIVIDUAL. 817 00:28:03,680 --> 00:28:05,200 50 OR OLDER A PATIENT WOULD COME 818 00:28:05,200 --> 00:28:06,760 ONCE A YEAR, EVERY OTHER YEAR, 819 00:28:06,760 --> 00:28:10,360 HAVE A BLOOD TEST AND IN A 820 00:28:10,360 --> 00:28:11,840 HEALTHY INDIVIDUAL, NOT KNOWN TO 821 00:28:11,840 --> 00:28:15,160 BE ILL, WOULD BE TESTED FOR UP 822 00:28:15,160 --> 00:28:16,920 TO 20 TO 50 CANCERS 823 00:28:16,920 --> 00:28:17,640 SIMULTANEOUSLY. 824 00:28:17,640 --> 00:28:19,200 THIS IS EXCITING TECHNOLOGY. 825 00:28:19,200 --> 00:28:22,120 SOME INITIAL CLINICAL TRIALS 826 00:28:22,120 --> 00:28:24,840 HAVE BEEN VERY IMPRESSIVE. 827 00:28:24,840 --> 00:28:26,120 BUT THERE'S A PROBLEM. 828 00:28:26,120 --> 00:28:27,600 FIRST OFF, THERE ARE ABOUT 20 829 00:28:27,600 --> 00:28:29,240 WAYS TO DO THIS IN DEVELOPMENT 830 00:28:29,240 --> 00:28:32,000 THAT I KNOW OF. 831 00:28:32,000 --> 00:28:34,160 THERE ARE PROBABLY ANOTHER 40 832 00:28:34,160 --> 00:28:35,400 THAT HAVEN'T BEEN DISCUSSED, 833 00:28:35,400 --> 00:28:35,800 LESS PUBLISHED. 834 00:28:35,800 --> 00:28:37,640 THERE ARE LOTS OF COMPETING 835 00:28:37,640 --> 00:28:38,840 APPROACHES TO THIS PROBLEM. 836 00:28:38,840 --> 00:28:40,920 WHICH OF THESE IS BEST AND MOST 837 00:28:40,920 --> 00:28:42,560 USEFUL FOR A POPULATION IS 838 00:28:42,560 --> 00:28:42,800 UNCLEAR. 839 00:28:42,800 --> 00:28:45,400 ALSO AS THIS GROUP IS AWARE, 840 00:28:45,400 --> 00:28:48,000 CANCER SCREENING IS ASSOCIATED 841 00:28:48,000 --> 00:28:49,640 OFTEN WITH DETECTION OF INDOLENT 842 00:28:49,640 --> 00:28:51,080 SUBCLINICAL CANCERS THAT MAY NOT 843 00:28:51,080 --> 00:28:52,920 BE CLINICALLY RELEVANT IN A 844 00:28:52,920 --> 00:28:54,680 PATIENT, THEIR DISCOVERY CAN 845 00:28:54,680 --> 00:28:57,200 LEAD TO ISSUES OF OVERDIAGNOSIS 846 00:28:57,200 --> 00:28:58,200 AND OVERTREATMENT, FINDING 847 00:28:58,200 --> 00:29:02,880 CANCER DOESN'T ALWAYS HELP THE 848 00:29:02,880 --> 00:29:04,280 PATIENT. 849 00:29:04,280 --> 00:29:05,280 WE'VE LEARNED THROUGH OTHER 850 00:29:05,280 --> 00:29:06,000 SCREENING INITIATIVES. 851 00:29:06,000 --> 00:29:07,560 WE HAVE UNDERSTAND THE IMPACT OF 852 00:29:07,560 --> 00:29:09,880 THIS TEST ON PATIENT OUTCOMES 853 00:29:09,880 --> 00:29:11,560 AND PATIENT QUALITY OF LIFE AND 854 00:29:11,560 --> 00:29:14,440 THINGS LIKE PATIENT MORTALITY. 855 00:29:14,440 --> 00:29:16,400 SO THESE REQUIRE LARGE COMPLEX 856 00:29:16,400 --> 00:29:17,960 TRIALS THAT WE THINK THE NCI 857 00:29:17,960 --> 00:29:19,920 SHOULD BE INVOLVED IN AND HELP 858 00:29:19,920 --> 00:29:20,120 PLAN. 859 00:29:20,120 --> 00:29:22,800 ONE OF THE THINGS WE HAVE AN RFI 860 00:29:22,800 --> 00:29:24,600 UNTIL MARCH 21 TO TRY AND GET 861 00:29:24,600 --> 00:29:26,520 ADVICE FROM THE COMMUNITY ABOUT 862 00:29:26,520 --> 00:29:27,600 WHAT ENDPOINTS SHOULD BE 863 00:29:27,600 --> 00:29:28,640 CONSIDERED, WHAT TRIALS SHOULD 864 00:29:28,640 --> 00:29:29,800 BE DESIGNED, ET CETERA. 865 00:29:29,800 --> 00:29:32,600 WE'RE HOPING TO GET GUIDANCE 866 00:29:32,600 --> 00:29:36,200 FROM THE CANCER RESEARCH 867 00:29:36,200 --> 00:29:43,960 COMMUNITY ABOUT OUR PLANNING 868 00:29:43,960 --> 00:29:45,560 AROUND MCEDs. 869 00:29:45,560 --> 00:29:47,000 IMPORTANT LEADERSHIP 870 00:29:47,000 --> 00:29:48,920 ANNOUNCEMENTS, THE DESIGNATION 871 00:29:48,920 --> 00:29:50,600 OF DR. ALONDRA NELSON, 872 00:29:50,600 --> 00:29:52,960 PERFORMING DUTIES OF DIRECTOR OF 873 00:29:52,960 --> 00:29:54,280 OSTP, AND DR. FRANCIS COLLINS 874 00:29:54,280 --> 00:29:57,360 WILL STEP IN TO PERFORM DUTIES 875 00:29:57,360 --> 00:29:58,760 OF SCIENCE ADVISER TO THE 876 00:29:58,760 --> 00:30:01,000 PRESIDENT AND CO-CHAIR OF PCAST, 877 00:30:01,000 --> 00:30:02,320 PRESIDENT'S COUNCIL OF ADVISORS 878 00:30:02,320 --> 00:30:03,640 ON SCIENCE AND TECHNOLOGY. 879 00:30:03,640 --> 00:30:07,200 SO IT'S GREAT TO HAVE A TEAM IN 880 00:30:07,200 --> 00:30:09,400 OSTP THAT UNDERSTANDS CANCER 881 00:30:09,400 --> 00:30:11,560 RESEARCH, AND THE NIH, AND CAN 882 00:30:11,560 --> 00:30:14,080 HELP US PLAN THINGS LIKE ARPA-H 883 00:30:14,080 --> 00:30:15,720 AND CANCER MOONSHOT, FINDING A 884 00:30:15,720 --> 00:30:17,360 NEW NIH DIRECTOR, LOTS OF OTHER 885 00:30:17,360 --> 00:30:19,000 THINGS ON THE NATIONAL SCIENCE 886 00:30:19,000 --> 00:30:19,200 DOCKET. 887 00:30:19,200 --> 00:30:21,400 WE LOOK FORWARD TO WORKING WITH 888 00:30:21,400 --> 00:30:22,480 DR. NELSON AND DR. COLLINS, AND 889 00:30:22,480 --> 00:30:24,600 I THINK THIS IS A GOOD 890 00:30:24,600 --> 00:30:27,520 DEVELOPMENT FOR THE NCI GIVEN 891 00:30:27,520 --> 00:30:29,080 PARTICULARLY OUR LONGSTANDING 892 00:30:29,080 --> 00:30:30,520 FRIENDSHIP AND EXPERIENCE WITH 893 00:30:30,520 --> 00:30:30,760 FRANCIS. 894 00:30:30,760 --> 00:30:32,160 NEXT SLIDE. 895 00:30:32,160 --> 00:30:35,640 I WANT TO POINT OUT IN LIGHT OF 896 00:30:35,640 --> 00:30:37,480 RECENT EVENTS AT OSTP, 897 00:30:37,480 --> 00:30:40,320 TERMINATION OF DR. LANDER, THAT 898 00:30:40,320 --> 00:30:43,040 THE NCI IS COMMITTED TO ENSURING 899 00:30:43,040 --> 00:30:43,920 CIVILITY, KINDNESS, MUTUAL 900 00:30:43,920 --> 00:30:45,440 RESPECT IN THE WORKPLACE, THESE 901 00:30:45,440 --> 00:30:48,280 ARE CORE VALUES AT THE NCI AND 902 00:30:48,280 --> 00:30:48,440 NIH. 903 00:30:48,440 --> 00:30:49,320 LOTS OF GOOD REASONS. 904 00:30:49,320 --> 00:30:50,720 WE BELIEVE THIS IS HOW PEOPLE DO 905 00:30:50,720 --> 00:30:51,720 THEIR BEST WORK. 906 00:30:51,720 --> 00:30:52,800 WE BELIEVE IT'S JUST MORALLY 907 00:30:52,800 --> 00:30:54,680 RIGHT TO HAVE AN ENVIRONMENT 908 00:30:54,680 --> 00:30:56,400 WHERE WE DO NOT TOLERATE 909 00:30:56,400 --> 00:30:57,720 BULLYING OR HARASSMENT OF ANY 910 00:30:57,720 --> 00:30:58,200 KIND. 911 00:30:58,200 --> 00:30:59,920 I'M SHOWING HERE A VERY STRONG 912 00:30:59,920 --> 00:31:02,200 QUOTE ON THIS TOPIC FROM DR. 913 00:31:02,200 --> 00:31:03,520 LARRY TABAK, ACTING DIRECTOR OF 914 00:31:03,520 --> 00:31:06,160 NIH, SAYING WE WILL HAVE AN 915 00:31:06,160 --> 00:31:08,560 ENVIRONMENT WHERE PEOPLE FEEL 916 00:31:08,560 --> 00:31:10,840 WELCOME, RESPECTED, VALUED, AND 917 00:31:10,840 --> 00:31:12,600 CONTINUED GROWTH IS GROUNDED IN 918 00:31:12,600 --> 00:31:13,480 EXPECTATION ALL EMPLOYEES 919 00:31:13,480 --> 00:31:15,360 RESPECT ONE ANOTHER IN WORKPLACE 920 00:31:15,360 --> 00:31:15,800 INTERACTIONS. 921 00:31:15,800 --> 00:31:18,280 WE DO LOTS OF THINGS TO ENSURE 922 00:31:18,280 --> 00:31:21,760 WORKPLACE CIVILITY, A WORKPLACE 923 00:31:21,760 --> 00:31:24,960 CIVILITY ANTI-HARASSMENT PROGRAM 924 00:31:24,960 --> 00:31:27,240 COORDINATED BY A COMMITTEE OF 925 00:31:27,240 --> 00:31:28,240 SENIOR REPRESENTATIVES, CLEAR 926 00:31:28,240 --> 00:31:30,400 POLICIES AND PROVIDED TOOL KITS 927 00:31:30,400 --> 00:31:33,080 AND TRAINING, INCORPORATED 928 00:31:33,080 --> 00:31:33,800 ANTI-HARASSMENT INTO OUR 929 00:31:33,800 --> 00:31:35,280 ONBOARDING EXERCISE AND ANNUAL 930 00:31:35,280 --> 00:31:36,440 PERFORMANCE EVALUATION, AND 931 00:31:36,440 --> 00:31:39,640 WE'VE DONE OTHER THINGS TO MAKE 932 00:31:39,640 --> 00:31:42,280 THE NCI A TERRIFIC MILIEU FOR 933 00:31:42,280 --> 00:31:42,480 WORK. 934 00:31:42,480 --> 00:31:44,680 WE SHARE THE COMMITMENT 935 00:31:44,680 --> 00:31:46,840 THROUGHOUT FEDERAL GOVERNMENT 936 00:31:46,840 --> 00:31:52,800 INCLUDING NIH. 937 00:31:52,800 --> 00:31:54,880 NEXT SLIDE. 938 00:31:54,880 --> 00:31:56,520 SHIFTING BACK TO THE ORIGINAL 939 00:31:56,520 --> 00:31:58,840 MOONSHOT, A LOT OF WORK IN 940 00:31:58,840 --> 00:32:02,200 PROGRESS, WE PROUD OF THE 70 941 00:32:02,200 --> 00:32:06,920 CONSORTIA WE'VE CREATED, 942 00:32:06,920 --> 00:32:10,200 NETWORKS AND CONSORTIUMS AND 240 943 00:32:10,200 --> 00:32:11,000 RESEARCH PROJECTS ACCELERATING 944 00:32:11,000 --> 00:32:14,000 CANCER PROJECTS IN THE 945 00:32:14,000 --> 00:32:15,120 TRANSLATION SPACE, A TREMENDOUS 946 00:32:15,120 --> 00:32:16,880 AMOUNT OF INFORMATION AT 947 00:32:16,880 --> 00:32:18,600 cancer.gov, DINAH SINGER AND I 948 00:32:18,600 --> 00:32:21,040 REVIEWED THE TOPIC IN A CANCER 949 00:32:21,040 --> 00:32:28,600 JOURNAL PROVIDING A LOT MORE 950 00:32:28,600 --> 00:32:32,000 EXAMPLES OF THINGS SUPPORTED AND 951 00:32:32,000 --> 00:32:32,280 FUNDING. 952 00:32:32,280 --> 00:32:35,240 FUNDING PLANNED TO SUNSET IN 953 00:32:35,240 --> 00:32:35,640 2023. 954 00:32:35,640 --> 00:32:37,960 SO TO CONTINUE THESE ACTIVITIES 955 00:32:37,960 --> 00:32:41,880 BEYOND 2023 AND TO SUPER CHARGE 956 00:32:41,880 --> 00:32:45,400 AND INCREASE BEYOND 2023 WOULD 957 00:32:45,400 --> 00:32:46,440 REQUIRE ADDITIONAL APPROPRIATION 958 00:32:46,440 --> 00:32:47,600 WHICH WE'LL BE LEARNING ABOUT IN 959 00:32:47,600 --> 00:32:55,960 THE FUTURE. 960 00:32:55,960 --> 00:32:56,680 NEXT SLIDE. 961 00:32:56,680 --> 00:33:00,400 HERE'S A REALLY INTERESTING 962 00:33:00,400 --> 00:33:04,800 STUDY PUBLISHED CO-AUTHORED BY 963 00:33:04,800 --> 00:33:09,080 SCIENTIST FROM DCCPS, CDC, 964 00:33:09,080 --> 00:33:09,720 EXTRAMURAL RESEARCHERS, BENEFIT 965 00:33:09,720 --> 00:33:12,400 OF PHYSICAL ACTIVITY IS NOT YET 966 00:33:12,400 --> 00:33:14,040 KNOWN, THIS USED ACCELEROMETER 967 00:33:14,040 --> 00:33:15,040 MEASUREMENT TO EXAMINE 968 00:33:15,040 --> 00:33:16,360 ASSOCIATION OF ACTIVITY WITH 969 00:33:16,360 --> 00:33:18,560 MORTALITY IN U.S. ADULTS, 970 00:33:18,560 --> 00:33:21,960 ESTIMATED NUMBERS OF DEATHS 971 00:33:21,960 --> 00:33:28,200 PREVENTED BY MODEST INCREASE IN 972 00:33:28,200 --> 00:33:31,160 ACTIVITY, DATA FROM NHANES, 973 00:33:31,160 --> 00:33:33,640 5,000 ADULTS, INCREASED ACTIVITY 974 00:33:33,640 --> 00:33:35,320 ASSOCIATED WITH DECREASE IN 975 00:33:35,320 --> 00:33:37,200 NUMBER OF DEATHS, WITH TEN 976 00:33:37,200 --> 00:33:38,680 MINUTES BEING GOOD, 20 MINUTES 977 00:33:38,680 --> 00:33:40,000 BETTER, 30 MINUTES BETTER STILL. 978 00:33:40,000 --> 00:33:42,040 HOW THIS WORKS WE DON'T FULLY 979 00:33:42,040 --> 00:33:42,920 UNDERSTAND. 980 00:33:42,920 --> 00:33:44,760 ONE OF THE LEADING HYPOTHESES 981 00:33:44,760 --> 00:33:46,760 EFFECT ON OBESITY BUT THERE WILL 982 00:33:46,760 --> 00:33:48,280 BE OTHER EXPLANATIONS, MORE 983 00:33:48,280 --> 00:33:49,240 RESEARCH IS NEEDED. 984 00:33:49,240 --> 00:33:53,360 IT MAKES A POINT A SMALL CHANGE 985 00:33:53,360 --> 00:33:57,000 IN BEHAVIOR AT THE POPULATION 986 00:33:57,000 --> 00:33:58,440 LEVEL COULD HAVE IMPORTANT 987 00:33:58,440 --> 00:34:00,800 IMPACT ON CANCER, THAT COULD 988 00:34:00,800 --> 00:34:01,400 DRIVE AGE-ADJUSTED NATIONAL 989 00:34:01,400 --> 00:34:01,760 MORTALITY. 990 00:34:01,760 --> 00:34:03,680 DATA AT THE BEGINNING OF THE 991 00:34:03,680 --> 00:34:04,600 TALK, ONE THINGS THAT'S 992 00:34:04,600 --> 00:34:07,320 IMPORTANT TO IDENTIFY THESE 993 00:34:07,320 --> 00:34:08,480 THINGS THAT HAVE POTENTIAL 994 00:34:08,480 --> 00:34:10,600 POPULATION LEVEL BENEFIT. 995 00:34:10,600 --> 00:34:12,000 NEXT SLIDE. 996 00:34:12,000 --> 00:34:13,960 WE'RE EXCITED ABOUT PROGRESS IN 997 00:34:13,960 --> 00:34:16,040 THE CHILDHOOD CANCER DATA 998 00:34:16,040 --> 00:34:17,680 INITIATIVE, ABOUT TO START ITS 999 00:34:17,680 --> 00:34:19,920 THIRD YEAR OF FUNDING, TO CREATE 1000 00:34:19,920 --> 00:34:23,960 INFRASTRUCTURE AND COMMUNITY TO 1001 00:34:23,960 --> 00:34:26,000 AGGREGATE DATA. 1002 00:34:26,000 --> 00:34:31,920 A PROVING GROUND OF THESE 1003 00:34:31,920 --> 00:34:35,840 TECHNOLOGIES, WE'LL BE ABLE TO 1004 00:34:35,840 --> 00:34:38,320 APPLY TO ADULT CANCERS. 1005 00:34:38,320 --> 00:34:41,000 WE HELD A SYMPOSIUM IN NOVEMBERI 1006 00:34:41,000 --> 00:34:42,800 RECOMMEND VIEWING THE VIDEO IF 1007 00:34:42,800 --> 00:34:44,320 YOU'RE INTERESTED IN CHILDHOOD 1008 00:34:44,320 --> 00:34:45,320 CANCER RESEARCH. 1009 00:34:45,320 --> 00:34:47,480 AND HERE ARE TWO MAJOR 1010 00:34:47,480 --> 00:34:51,080 HIGHLIGHTS OF THE PROGRAM, NOT 1011 00:34:51,080 --> 00:34:54,160 THE ONLY THINGS CCDI IS DOING 1012 00:34:54,160 --> 00:35:00,960 BUT TWO MAJOR COMPONENT, ONE IS 1013 00:35:00,960 --> 00:35:01,800 CHILDHOOD MOLECULAR 1014 00:35:01,800 --> 00:35:02,920 CHARACTERIZATION INITIATIVE TO 1015 00:35:02,920 --> 00:35:05,560 SEQUENCE TUMORS IN OF THIS 1016 00:35:05,560 --> 00:35:07,120 SPRING, BEGINNING SOON, TO 1017 00:35:07,120 --> 00:35:10,400 CHARACTERIZE AROUND 3,000 1018 00:35:10,400 --> 00:35:12,640 CHILDREN WITH HARD TO TREAT 1019 00:35:12,640 --> 00:35:13,320 CANCERS, ANNUALLY. 1020 00:35:13,320 --> 00:35:16,240 ON THE RIGHT IS NATIONAL 1021 00:35:16,240 --> 00:35:18,240 CHILDHOOD CANCER REGISTRY 1022 00:35:18,240 --> 00:35:22,840 SEEKING TO INTEGRATE DATA AND 1023 00:35:22,840 --> 00:35:25,120 ENSURES TO A COMMON AREA TO BE 1024 00:35:25,120 --> 00:35:27,360 USED IN A WAY THAT PRESERVES 1025 00:35:27,360 --> 00:35:28,520 PRIVACY OF INDIVIDUALS BUT CAN 1026 00:35:28,520 --> 00:35:30,160 BE USED FOR LOTS OF GREAT 1027 00:35:30,160 --> 00:35:30,800 RESEARCH PURPOSES. 1028 00:35:30,800 --> 00:35:33,440 YOU CAN THINK OF THIS AS THE 1029 00:35:33,440 --> 00:35:34,600 CHILDHOOD VERSION OF SEER 1030 00:35:34,600 --> 00:35:35,800 MEDICARE BUT WITH OTHER 1031 00:35:35,800 --> 00:35:36,800 CAPABILITIES THAT DON'T 1032 00:35:36,800 --> 00:35:38,200 CURRENTLY EXIST IN SEER 1033 00:35:38,200 --> 00:35:38,440 MEDICARE. 1034 00:35:38,440 --> 00:35:43,880 FOR THOSE WHO KNOW, THE SEER 1035 00:35:43,880 --> 00:35:45,400 MEDICARE DATABASE IS 1036 00:35:45,400 --> 00:35:46,040 TREMENDOUSLY USEFUL FOR CANCER 1037 00:35:46,040 --> 00:35:48,240 OUTCOMES IN THE REAL WORLD AND 1038 00:35:48,240 --> 00:35:50,400 WE THINK THE REGISTRY WILL PLAY 1039 00:35:50,400 --> 00:35:53,600 THIS ROLE FOR PEDIATRIC CANCER. 1040 00:35:53,600 --> 00:35:54,520 NEXT SLIDE PLEASE. 1041 00:35:54,520 --> 00:35:57,880 AS WE THINK ABOUT WHERE WE CAN 1042 00:35:57,880 --> 00:36:00,960 MAKE -- IMPROVE HEALTH EQUITY 1043 00:36:00,960 --> 00:36:02,200 THROUGH PREVENTION, CERVICAL 1044 00:36:02,200 --> 00:36:03,360 CANCER REMAINS SIGNIFICANT 1045 00:36:03,360 --> 00:36:03,640 OPPORTUNITY. 1046 00:36:03,640 --> 00:36:05,520 WE MADE GREAT PROGRESS LAST FEW 1047 00:36:05,520 --> 00:36:07,480 DECADES THANKS TO SCREENING WITH 1048 00:36:07,480 --> 00:36:09,800 PAP SMEARS AND OTHER APPROACHES, 1049 00:36:09,800 --> 00:36:13,200 HPV TESTING, ALSO NOW WITH HPV 1050 00:36:13,200 --> 00:36:13,600 VACCINATION. 1051 00:36:13,600 --> 00:36:14,800 HOWEVER, SOME POPULATIONS STILL 1052 00:36:14,800 --> 00:36:16,240 FACE GREATER RISK OF DEVELOPING 1053 00:36:16,240 --> 00:36:18,440 THIS DISEASE AND DYING OF THIS 1054 00:36:18,440 --> 00:36:19,200 DISEASE. 1055 00:36:19,200 --> 00:36:19,960 HISPANIC AND LATINO WOMEN, BLACK 1056 00:36:19,960 --> 00:36:21,800 AND AFRICAN AMERICAN WOMEN HAVE 1057 00:36:21,800 --> 00:36:23,440 HIGHER RATES OF CERVICAL CANCER 1058 00:36:23,440 --> 00:36:24,920 THAN WOMEN OF OTHER RACIAL AND 1059 00:36:24,920 --> 00:36:25,520 ETHNIC GROUPS. 1060 00:36:25,520 --> 00:36:28,240 BLACK AND AFRICAN AMERICAN WOMEN 1061 00:36:28,240 --> 00:36:30,200 IN PARTICULAR HAVE HIGHER RATE 1062 00:36:30,200 --> 00:36:32,400 OF DEATH FROM THIS DISEASE. 1063 00:36:32,400 --> 00:36:35,440 WOMEN IN RURAL REGIONS, FOR 1064 00:36:35,440 --> 00:36:40,240 EXAMPLE, APPALACHIA, HAVE A A 1065 00:36:40,240 --> 00:36:41,400 HIGHER INCIDENCE OF MORTALITY 1066 00:36:41,400 --> 00:36:43,600 THAN WOMEN FROM URBAN AREAS. 1067 00:36:43,600 --> 00:36:44,520 UNDERSTANDING WHAT CAUSES 1068 00:36:44,520 --> 00:36:47,600 DISPARITIES AND WHY THEY PERSIST 1069 00:36:47,600 --> 00:36:49,080 IS AN IMPORTANT RESEARCH 1070 00:36:49,080 --> 00:36:49,400 QUESTION. 1071 00:36:49,400 --> 00:36:51,920 SAFETY NET HEALTH CARE SETTINGS 1072 00:36:51,920 --> 00:36:53,280 PROVIDE CRITICAL CARE TO MEMBERS 1073 00:36:53,280 --> 00:36:55,240 OF THE POPULATION IN TERMS OF 1074 00:36:55,240 --> 00:36:56,000 PREVENTION AND SCREENING. 1075 00:36:56,000 --> 00:36:57,680 SO IT'S IMPORTANT THEY ARE 1076 00:36:57,680 --> 00:37:00,200 EQUIPPED WITH BEST APPROACHES TO 1077 00:37:00,200 --> 00:37:01,600 OVERCOME DISPARITIES. 1078 00:37:01,600 --> 00:37:03,480 WORKING ACROSS GOVERNMENT WE 1079 00:37:03,480 --> 00:37:04,760 FORMED THE FEDERAL COLLABORATIVE 1080 00:37:04,760 --> 00:37:07,400 TO SPEED UPTAKE OF GUIDELINES 1081 00:37:07,400 --> 00:37:09,480 AND VACCINATION EFFORTS, NCI 1082 00:37:09,480 --> 00:37:11,120 INITIATED THIS HHS-WIDE 1083 00:37:11,120 --> 00:37:12,440 COLLABORATION TO BRIDGE THE 1084 00:37:12,440 --> 00:37:14,600 FEDERAL PRIORITIES OF CANCER 1085 00:37:14,600 --> 00:37:18,400 RESEVER AND HEALTH CARE DELIVERY 1086 00:37:18,400 --> 00:37:23,400 BY HRSA-SUPPORTED SAFETY NET 1087 00:37:23,400 --> 00:37:28,840 SETTINGS OF CARE, AND REPRESENTS 1088 00:37:28,840 --> 00:37:33,520 WORK FROM THE NCI, DELIVERABLES 1089 00:37:33,520 --> 00:37:39,800 AND GOALS ARE REALLY IMPORTANT, 1090 00:37:39,800 --> 00:37:41,000 WITH GUAM, PACIFIC ISLANDS, 1091 00:37:41,000 --> 00:37:44,480 TALKING ABOUT WAYS TO MAKE 1092 00:37:44,480 --> 00:37:45,640 PROGRESS. 1093 00:37:45,640 --> 00:37:47,200 NEXT SLIDE. 1094 00:37:47,200 --> 00:37:48,720 ANOTHER COLLABORATION RECENTLY 1095 00:37:48,720 --> 00:37:51,160 GIVING INSIGHT, RELATES TO ROLE 1096 00:37:51,160 --> 00:37:55,080 OF HP VACCINATION IN SPECIFIC 1097 00:37:55,080 --> 00:37:55,680 POPULATIONS AND UNDERSTANDING 1098 00:37:55,680 --> 00:37:58,200 WHAT SUBGROUPS THIS VACCINATION 1099 00:37:58,200 --> 00:37:59,880 IS MOST EFFECTIVE. 1100 00:37:59,880 --> 00:38:07,320 DCEG AND CDC CONDUCTED AN 1101 00:38:07,320 --> 00:38:08,840 ANALYSIS THAT PRODUCED CANCER IN 1102 00:38:08,840 --> 00:38:10,480 AMERICANS, AND THESE RESULTS 1103 00:38:10,480 --> 00:38:13,960 WERE PUBLISHED IN THE JNCI IN 1104 00:38:13,960 --> 00:38:16,000 FEBRUARY, ACROSS MAJOR RACIAL 1105 00:38:16,000 --> 00:38:21,440 AND ETHNIC GROUPS 84% OF 1106 00:38:21,440 --> 00:38:22,800 PRE-CANCERS ATTRIBUTED TO HPV 1107 00:38:22,800 --> 00:38:27,120 TIMES TARGETED BY THE NINE 1108 00:38:27,120 --> 00:38:30,160 VALENT VACCINE, NOT ALL HPV 1109 00:38:30,160 --> 00:38:30,600 SUBTYPES. 1110 00:38:30,600 --> 00:38:32,600 THE NINE VALENT VACCINE COULD 1111 00:38:32,600 --> 00:38:35,480 PREVENT NEARLY ALL CERVICAL 1112 00:38:35,480 --> 00:38:37,600 PRE-CANCER AND INVASIVE CANCERS 1113 00:38:37,600 --> 00:38:38,520 AMONG MAJOR RACIAL GROUPS IN THE 1114 00:38:38,520 --> 00:38:40,720 UNITED STATES BUT THERE WERE 1115 00:38:40,720 --> 00:38:43,240 SOME ADDITIONAL THINGS TO NOTE. 1116 00:38:43,240 --> 00:38:47,000 NON-HISPANIC BLACK WOMEN HIGHER 1117 00:38:47,000 --> 00:38:50,600 PROPORTION OF SQUAMOUS CERVICAL 1118 00:38:50,600 --> 00:38:56,080 PRE-CANCERS TRIBUTE OF 1119 00:38:56,080 --> 00:38:58,760 ATTRIBUTED TO NON-VACCINE TYPES, 1120 00:38:58,760 --> 00:39:02,840 SPECIFICALLY HPV 35 WAS MORE 1121 00:39:02,840 --> 00:39:05,400 PREVALENT WITH SQUAMOUS CERVICAL 1122 00:39:05,400 --> 00:39:07,320 PRE-CANCER, 9% VERSUS ON THE 1123 00:39:07,320 --> 00:39:10,480 ORDER OF 2% FOR OTHER GROUP, 1124 00:39:10,480 --> 00:39:12,560 ADDING TO LITERATURE THAT IT HAS 1125 00:39:12,560 --> 00:39:15,520 POTENTIAL IMPORTANT ROLE AMONG 1126 00:39:15,520 --> 00:39:16,480 WOMEN OF AFRICAN ANCESTRY, AN 1127 00:39:16,480 --> 00:39:18,680 AREA WHERE THE NCI NEEDS TO 1128 00:39:18,680 --> 00:39:19,760 UNDERSTAND WHY THIS HAPPENS, IS 1129 00:39:19,760 --> 00:39:22,040 THERE SOMETHING WE CAN DO, IN 1130 00:39:22,040 --> 00:39:26,000 PARTICULAR DOES THIS LEAD TO 1131 00:39:26,000 --> 00:39:28,160 FUTURE VACCINE DESIGN, TO FUTURE 1132 00:39:28,160 --> 00:39:35,400 VACCINES THAT MIGHT COVER HPV 35 1133 00:39:35,400 --> 00:39:37,000 FOR EXAMPLE. 1134 00:39:37,000 --> 00:39:39,480 WHY DO SOME TREATMENTS WORK? 1135 00:39:39,480 --> 00:39:44,760 HUNDREDS HAVE BEEN RECEIVING 1136 00:39:44,760 --> 00:39:48,800 COMMUNE CHECKPOINT INHIBITORS, 1137 00:39:48,800 --> 00:39:49,680 DRUGS LIKE PEMBROLIZUMAB, BUT 1138 00:39:49,680 --> 00:39:51,800 DON'T WORK IN THE MAJORITY, 1139 00:39:51,800 --> 00:39:54,000 MARVELOUS IN SOME, NOT EVERYONE. 1140 00:39:54,000 --> 00:40:03,880 A TEAM ASKED THE QUESTION WHY 1141 00:40:03,880 --> 00:40:06,000 SOME PATIENTS BENEFIT, 1142 00:40:06,000 --> 00:40:15,880 CONCENTRATING ON MHC MOLECULES. 1143 00:40:15,880 --> 00:40:19,960 A TEAM OF SCIENTISTS, WORK 1144 00:40:19,960 --> 00:40:20,640 TOGETHER. 1145 00:40:20,640 --> 00:40:23,200 THIS PAPER WAS PUBLISHED IN 1146 00:40:23,200 --> 00:40:25,960 LANCET ONCOLOGY RECENTLY 1147 00:40:25,960 --> 00:40:32,160 POINTING TO A SUBTYPE, HLA- 03, 1148 00:40:32,160 --> 00:40:34,880 SHOWN HERE ON THIS KAPLAN-MEIER 1149 00:40:34,880 --> 00:40:36,080 SURVIVAL CURVE. 1150 00:40:36,080 --> 00:40:38,800 THIS MEANS THIS ALLELE COULD BE 1151 00:40:38,800 --> 00:40:40,320 USEFUL MARKER OF SCREENING 1152 00:40:40,320 --> 00:40:45,360 MARKER FOR RESPONSE BUT ALSO MAY 1153 00:40:45,360 --> 00:40:46,880 HELP US UNDERSTAND WHAT IS 1154 00:40:46,880 --> 00:40:48,880 IMPORTANT IN IMMUNE RESPONSE, 1155 00:40:48,880 --> 00:40:50,200 THERE BY IMPROVING ONCOLOGY 1156 00:40:50,200 --> 00:40:52,240 RESPONSES FOR ALL PATIENTS. 1157 00:40:52,240 --> 00:40:55,400 IT'S ALSO IMPORTANT THAT THIS 1158 00:40:55,400 --> 00:40:58,000 WORK INCLUDED GROUNDBREAKING 1159 00:40:58,000 --> 00:40:58,520 SCIENTIFIC CAPABILITIES OF 1160 00:40:58,520 --> 00:40:59,440 FREDERICK NATIONAL LAB. 1161 00:40:59,440 --> 00:41:04,000 IRHAVEN'T -- IT'S AN IMPORTANT 1162 00:41:04,000 --> 00:41:05,840 PART OF NCI MISSION THAT ALLOWS 1163 00:41:05,840 --> 00:41:08,800 THIS KIND OF SCIENCE. 1164 00:41:08,800 --> 00:41:09,720 NEXT SLIDE. 1165 00:41:09,720 --> 00:41:11,920 WE'VE ALSO BEEN FINDING EVIDENCE 1166 00:41:11,920 --> 00:41:14,200 ABOUT THE ROLE OF THE MICROBIOME 1167 00:41:14,200 --> 00:41:16,760 IN CANCER RESEARCH. 1168 00:41:16,760 --> 00:41:18,600 A RECENT STUDY VERY PROVOCATIVE 1169 00:41:18,600 --> 00:41:20,800 BY RESEARCHERS AT CCR AND WITH 1170 00:41:20,800 --> 00:41:22,320 COLLABORATORS AT UNIVERSITY OF 1171 00:41:22,320 --> 00:41:24,560 TEXAS M.D. ANDERSON SHOWED A 1172 00:41:24,560 --> 00:41:26,800 DIET RICH IN FIBER MAY HELP SOME 1173 00:41:26,800 --> 00:41:27,880 PEOPLE TREATED FOR MELANOMA IN 1174 00:41:27,880 --> 00:41:30,480 TERMS OF RESPONSE TO IMMUNE 1175 00:41:30,480 --> 00:41:31,120 CHECKPOINT INHIBITORS, PUBLISHED 1176 00:41:31,120 --> 00:41:33,200 IN "SCIENCE" IN DECEMBER. 1177 00:41:33,200 --> 00:41:40,920 LOOKING AT COMPOSITION OF FECAL 1178 00:41:40,920 --> 00:41:42,600 MICROBE ORGANISMS, GUT 1179 00:41:42,600 --> 00:41:43,360 MICROBIOTA, AND SUPPLEMENTS, 1180 00:41:43,360 --> 00:41:45,600 CORRELATING CLINICAL FEATURES 1181 00:41:45,600 --> 00:41:48,040 WITH RESPONSE TO CHECKPOINT 1182 00:41:48,040 --> 00:41:50,560 INHIBITORS AMONG A SMALL SAMPLE, 1183 00:41:50,560 --> 00:41:52,440 128 PATIENTS, BUT CERTAIN IN 1184 00:41:52,440 --> 00:41:55,040 THAT SAMPLE SAW THIS SIGNIFICANT 1185 00:41:55,040 --> 00:41:58,560 ASSOCIATION BETWEEN ASPECTS OF 1186 00:41:58,560 --> 00:42:00,200 DIET AND OUTCOME AND PROBIOTIC 1187 00:42:00,200 --> 00:42:01,600 USE AND OUTCOME. 1188 00:42:01,600 --> 00:42:04,800 THIS IS PROVOCATIVE WORK AND 1189 00:42:04,800 --> 00:42:05,720 CERTAINLY REQUIRES ADDITIONAL 1190 00:42:05,720 --> 00:42:09,400 LARGER STUDY TO SEE IF WE CAN 1191 00:42:09,400 --> 00:42:10,720 UNDERSTAND INTERACTION BETWEEN 1192 00:42:10,720 --> 00:42:12,880 THE GUT MICROBIOME AND RESPONSE 1193 00:42:12,880 --> 00:42:14,640 TO CHECKPOINT INHIBITORS. 1194 00:42:14,640 --> 00:42:16,800 NEXT SLIDE. 1195 00:42:16,800 --> 00:42:18,800 OUR EFFORTS TO END CANCER 1196 00:42:18,800 --> 00:42:20,480 INCLUDE EFFORTS TO END CHILDHOOD 1197 00:42:20,480 --> 00:42:25,360 CANCER, THE NCI HAS BEEN 1198 00:42:25,360 --> 00:42:26,200 COMMITTED TO UNRAVELING 1199 00:42:26,200 --> 00:42:27,000 INTRICACIES RECOGNIZING CHILDREN 1200 00:42:27,000 --> 00:42:28,760 ARE NOT JUST LITTLE ADULTS, THEY 1201 00:42:28,760 --> 00:42:31,040 HAVE SPECIAL PROBLEMS AND 1202 00:42:31,040 --> 00:42:33,000 SPECIAL ISSUES OF SURVIVORSHIP 1203 00:42:33,000 --> 00:42:35,480 AND OTHER THINGS AROUND 1204 00:42:35,480 --> 00:42:37,760 TREATMENT AND OUTCOMES IN 1205 00:42:37,760 --> 00:42:38,320 CANCER. 1206 00:42:38,320 --> 00:42:41,600 AND SO TO HELP GET ADDITIONAL 1207 00:42:41,600 --> 00:42:43,440 PERSPECTIVE THINKING ON 1208 00:42:43,440 --> 00:42:54,800 CHILDHOOD CANCER I'VE ASKED DR. 1209 00:42:54,800 --> 00:42:56,400 WIDEMANNNN TO JOIN PROGRAM 1210 00:42:56,400 --> 00:43:01,280 LEADERS, CLAP -- COLLABORATING 1211 00:43:01,280 --> 00:43:03,360 WITH EXTRAMURAL INSTITUTIONS, 1212 00:43:03,360 --> 00:43:04,600 FAMILIAR WITH NCI'S PORTFOLIO, 1213 00:43:04,600 --> 00:43:08,600 HER WORK AROUND THIS TOPIC OF 1214 00:43:08,600 --> 00:43:10,960 RAS-OPATHYS AND GROUNDBREAKING 1215 00:43:10,960 --> 00:43:16,400 AND LED TO RECENT FDA APPROVAL 1216 00:43:16,400 --> 00:43:20,080 OF TREMENDOUS FOR 1217 00:43:20,080 --> 00:43:25,320 NEUROFIBROMATOSIS, TERRIFIC TO 1218 00:43:25,320 --> 00:43:26,760 HAVE BRIGITTE'S ADVICE, PLANNING 1219 00:43:26,760 --> 00:43:28,200 THE CANCER INITIATIVE AND 1220 00:43:28,200 --> 00:43:31,520 PORTFOLIO OF CLINICAL TRIALS IN 1221 00:43:31,520 --> 00:43:33,760 CHARTER SCHOOLED -- CHILDHOOD 1222 00:43:33,760 --> 00:43:34,000 CANCER. 1223 00:43:34,000 --> 00:43:37,640 SHE CONTINUES IN HER OTHER ROLE 1224 00:43:37,640 --> 00:43:41,600 RUNNING PEDIATRIC ONCOLOGY 1225 00:43:41,600 --> 00:43:42,800 BRANCH, SHE'S BUSY. 1226 00:43:42,800 --> 00:43:45,080 I'LL CLOSE WITH REFLECTIONS ON 1227 00:43:45,080 --> 00:43:45,760 RECENT EVENTS. 1228 00:43:45,760 --> 00:43:48,040 I'VE BEEN IMPRESSED BY THE 1229 00:43:48,040 --> 00:43:50,120 PHYSICAL LADY'S GRASP AND 1230 00:43:50,120 --> 00:43:51,680 INTEREST IN HELPING, SHE ALSO 1231 00:43:51,680 --> 00:43:53,760 SPOKE AND ECHOED WHAT I BELIEVE 1232 00:43:53,760 --> 00:43:55,920 IS THE SENSE WE'RE LIVING IN A 1233 00:43:55,920 --> 00:43:56,840 GOLDEN AGE OF CANCER RESEARCH 1234 00:43:56,840 --> 00:43:58,680 AND NOW IS THE TIME FOR A REAL 1235 00:43:58,680 --> 00:44:00,640 OPPORTUNITY TO MAKE PROGRESS FOR 1236 00:44:00,640 --> 00:44:02,280 OUR PATIENTS. 1237 00:44:02,280 --> 00:44:04,360 HER COMMENTS SPEAK VOLUMES, SHOW 1238 00:44:04,360 --> 00:44:05,680 THE BIDENS UNDERSTAND CANCER 1239 00:44:05,680 --> 00:44:06,800 RESEARCH, THE NEED FOR CANCER 1240 00:44:06,800 --> 00:44:08,720 PROGRESS AND BELIEVE THE TIME IS 1241 00:44:08,720 --> 00:44:08,880 NOW. 1242 00:44:08,880 --> 00:44:10,480 IT'S HARD NOT TO BE INSPIRED BY 1243 00:44:10,480 --> 00:44:11,560 THAT. 1244 00:44:11,560 --> 00:44:13,600 ALL OF US IN THE ROOM FELT THAT 1245 00:44:13,600 --> 00:44:16,920 WAY AT THE EVENT. 1246 00:44:16,920 --> 00:44:20,200 SO, I WANT TO CLOSE BY, NEXT 1247 00:44:20,200 --> 00:44:21,760 SLIDE, BY ALSO SPEAKING ABOUT 1248 00:44:21,760 --> 00:44:23,000 THE VICE PRESIDENT'S COMMENTS AT 1249 00:44:23,000 --> 00:44:23,480 THE EVENT. 1250 00:44:23,480 --> 00:44:26,640 THE VICE PRESIDENT MENTIONED HER 1251 00:44:26,640 --> 00:44:29,280 MOTHER'S WORK, A CANCER 1252 00:44:29,280 --> 00:44:30,160 RESEARCHER INTERESTED IN 1253 00:44:30,160 --> 00:44:31,120 ESTROGEN RECEPTOR POSITIVE 1254 00:44:31,120 --> 00:44:34,200 BREAST CANCER AND DIED OF COLON 1255 00:44:34,200 --> 00:44:34,440 CANCER. 1256 00:44:34,440 --> 00:44:37,040 YOU COULD REALLY HEAR THE LOVE 1257 00:44:37,040 --> 00:44:38,080 AND RESPECT VICE PRESIDENT 1258 00:44:38,080 --> 00:44:40,400 HARRIS HAS FOR HER MOTHER, WHEN 1259 00:44:40,400 --> 00:44:42,800 SHE WAS TALKING ABOUT HER AT THE 1260 00:44:42,800 --> 00:44:43,800 MOONSHOT EVENT. 1261 00:44:43,800 --> 00:44:45,640 SHE SAID THIS, IT'S A NICE 1262 00:44:45,640 --> 00:44:46,080 QUOTE. 1263 00:44:46,080 --> 00:44:47,840 IN AMERICA WE NOT ONLY DREAM BUT 1264 00:44:47,840 --> 00:44:48,480 WE DO. 1265 00:44:48,480 --> 00:44:51,880 WE NOT ONLY SEE WHAT CAN BE, WE 1266 00:44:51,880 --> 00:44:53,760 SEE WHERE WE CAN GO IN A WAY 1267 00:44:53,760 --> 00:44:55,520 WHEN WE REACH FOR THE MOON WE 1268 00:44:55,520 --> 00:44:57,480 PLANT OUR FLAG ON IT. 1269 00:44:57,480 --> 00:44:58,560 THAT'S A GREAT METAPHOR TO HELP 1270 00:44:58,560 --> 00:45:03,920 US KICK OFF THE MOONSHOT AND 1271 00:45:03,920 --> 00:45:05,240 SORT OF HAS GOTTEN IS THINKING 1272 00:45:05,240 --> 00:45:06,680 AT THE NCI. 1273 00:45:06,680 --> 00:45:07,520 THAT'S MY REMARKS. 1274 00:45:07,520 --> 00:45:10,480 LET ME THANK YOU ALL FOR YOUR 1275 00:45:10,480 --> 00:45:12,200 WORK ON BEHALF OF THE NCI. 1276 00:45:12,200 --> 00:45:14,440 GOOD TO SEE YOU ALL AGAIN 1277 00:45:14,440 --> 00:45:15,000 VIRTUALLY. 1278 00:45:15,000 --> 00:45:24,200 I'D BE INTERESTING IN HEARING 1279 00:45:24,200 --> 00:45:29,000 COMMENTS OR QUESTIONS. 1280 00:45:29,000 --> 00:45:31,240 >> WE CAN TRANSITION TO Q&A. 1281 00:45:31,240 --> 00:45:33,240 DO YOU HAVE ANY QUESTIONS, 1282 00:45:33,240 --> 00:45:33,800 COUNCIL MEMBERS? 1283 00:45:33,800 --> 00:45:35,280 PLEASE RAISE YOUR HAND AND I'LL 1284 00:45:35,280 --> 00:45:37,160 CALL ON YOU. 1285 00:45:37,160 --> 00:45:41,000 IF NOT, I'LL KICK IT OFF WITH A 1286 00:45:41,000 --> 00:45:41,240 QUESTION. 1287 00:45:41,240 --> 00:45:42,280 OH, ANNIE. 1288 00:45:42,280 --> 00:45:42,520 >> HI. 1289 00:45:42,520 --> 00:45:44,000 THANKS, ANGIE. 1290 00:45:44,000 --> 00:45:45,680 THANK YOU, DR. SHARPLESS. 1291 00:45:45,680 --> 00:45:46,760 IT'S A HIGHLIGHT TO HEAR ALL 1292 00:45:46,760 --> 00:45:49,720 THAT YOU HAVE TO SHARE WITH US. 1293 00:45:49,720 --> 00:45:51,720 THIS PARTICULAR REPORT WAS 1294 00:45:51,720 --> 00:45:52,840 EXTREMELY EXCITING, WITH, YOU 1295 00:45:52,840 --> 00:45:55,960 KNOW, THE NEWS OF THE CANCER 1296 00:45:55,960 --> 00:45:57,080 MOONSHOTS AND NEW SCIENCE COMING 1297 00:45:57,080 --> 00:45:58,080 OUT. 1298 00:45:58,080 --> 00:46:00,880 THANK YOU VERY MUCH. 1299 00:46:00,880 --> 00:46:03,840 I'M ALWAYS JUST SO MESMERIZED BY 1300 00:46:03,840 --> 00:46:05,480 THE CANCER MORTALITY MAPS IN 1301 00:46:05,480 --> 00:46:07,600 CERTAIN ZIP CODES AND GROUPS. 1302 00:46:07,600 --> 00:46:10,520 AND SO I'M VERY EXCITED ABOUT 1303 00:46:10,520 --> 00:46:15,080 THE GOAL TO REDUCE MORTALITY TO 1304 00:46:15,080 --> 00:46:18,040 73 PER 100,000 AND WONDERING IF 1305 00:46:18,040 --> 00:46:21,560 THERE'S GOING TO BE ANY PLANS OR 1306 00:46:21,560 --> 00:46:23,600 STRATEGY FOR EQUITABLE 1307 00:46:23,600 --> 00:46:24,520 DISTRIBUTION OF GRANT FUNDING 1308 00:46:24,520 --> 00:46:29,200 FOR THOSE ZIP CODES OR 1309 00:46:29,200 --> 00:46:31,520 RACE/ETHNICITIES THAT ARE HAVING 1310 00:46:31,520 --> 00:46:40,520 PERSISTENT DISPARITIES IN 1311 00:46:40,520 --> 00:46:41,600 SURVIVAL, SEEMS LIKE THERE WOULD 1312 00:46:41,600 --> 00:46:44,240 BE MORE BANG FOR THE BUCK 1313 00:46:44,240 --> 00:46:47,080 FOCUSES ON PEOPLE WHO DID THE 1314 00:46:47,080 --> 00:46:47,400 WORTH. 1315 00:46:47,400 --> 00:46:48,960 >> I AGREE IT'S A LAUDABLE THING 1316 00:46:48,960 --> 00:46:52,200 FOR THE NCI AND NIH TO SUPPORT. 1317 00:46:52,200 --> 00:46:55,960 THERE ARE A COUPLE THINGS. 1318 00:46:55,960 --> 00:46:59,200 AS YOU KNOW, THERE IS THE IDeA 1319 00:46:59,200 --> 00:47:01,080 STATE PROGRAM ACROSS THE NIH 1320 00:47:01,080 --> 00:47:03,080 THAT TRIES TO DRIVE NIH FUNDING 1321 00:47:03,080 --> 00:47:05,200 TO AREAS OF THE COUNTRY THAT 1322 00:47:05,200 --> 00:47:07,600 HAVE LESS -- TRYING TO EVEN IT 1323 00:47:07,600 --> 00:47:09,160 OUT THROUGH THAT. 1324 00:47:09,160 --> 00:47:11,000 ADDITIONALLY THERE ARE SPECIFIC 1325 00:47:11,000 --> 00:47:13,000 PROGRAMS THAT HAVE BEEN MORE 1326 00:47:13,000 --> 00:47:17,280 SUCCESSFUL IN TERMS OF GEOGRAPHY 1327 00:47:17,280 --> 00:47:19,080 THAN TRADITIONAL R01 FUNDING. 1328 00:47:19,080 --> 00:47:21,000 THIS IS AN AREA I THINK THE REAL 1329 00:47:21,000 --> 00:47:25,280 QUESTION IS WHAT IS THE RIGHT 1330 00:47:25,280 --> 00:47:27,080 BALANCE FOR THE NCI? 1331 00:47:27,080 --> 00:47:30,600 WE WANT TO STRONGLY, STRONGLY 1332 00:47:30,600 --> 00:47:31,640 ENCOURAGE INVESTIGATOR-INITIATED 1333 00:47:31,640 --> 00:47:31,920 RESEARCH. 1334 00:47:31,920 --> 00:47:33,080 ONE THING IS THEY GET TO PICK 1335 00:47:33,080 --> 00:47:35,240 WHERE THEY LIVE AND DO THEIR 1336 00:47:35,240 --> 00:47:35,600 RESEARCH. 1337 00:47:35,600 --> 00:47:37,640 WE DON'T THINK THAT WE'RE GOING 1338 00:47:37,640 --> 00:47:40,880 TO PUT SPECIFIC PROHIBITIONS ON 1339 00:47:40,880 --> 00:47:41,520 THE INVESTIGATOR-INITIATED POOL, 1340 00:47:41,520 --> 00:47:46,400 WITH A FEW -- WE DO HAVE AWARDS 1341 00:47:46,400 --> 00:47:49,680 FOR CERTAIN POPULATIONS OF 1342 00:47:49,680 --> 00:47:50,640 INVESTIGATORS, DIVERSITY, IDeA 1343 00:47:50,640 --> 00:47:52,000 STATE PROGRAM, BUT FOR THE MOST 1344 00:47:52,000 --> 00:47:54,920 PART A LOT OF RPG POOL IS 1345 00:47:54,920 --> 00:47:55,960 INVESTIGATOR INITIATED, AN AREA 1346 00:47:55,960 --> 00:47:57,440 WE JUST FUND STRAIGHT BY 1347 00:47:57,440 --> 00:48:01,000 PERCENTILE FOR THE MOST PART. 1348 00:48:01,000 --> 00:48:03,200 ONE WAY THE NCI CAN BE EFFECTIVE 1349 00:48:03,200 --> 00:48:05,400 IN THIS REGARD IS THROUGH 1350 00:48:05,400 --> 00:48:06,760 TOPICS. 1351 00:48:06,760 --> 00:48:08,800 WE HAVE FUNDING ANNOUNCEMENTS 1352 00:48:08,800 --> 00:48:10,800 THAT TRY AND ADDRESS SPECIFIC 1353 00:48:10,800 --> 00:48:12,600 POPULATIONS, AND OFTEN THE 1354 00:48:12,600 --> 00:48:13,800 PEOPLE WHO WRITE SUCCESSFULLY 1355 00:48:13,800 --> 00:48:15,240 FOR THOSE AWARDS ARE PEOPLE WHO 1356 00:48:15,240 --> 00:48:17,080 LIVE IN THOSE AREAS AND TAKE 1357 00:48:17,080 --> 00:48:18,200 CARE OF THOSE CATCHMENT AREAS OF 1358 00:48:18,200 --> 00:48:20,600 THE POPULATION. 1359 00:48:20,600 --> 00:48:24,640 EXAMPLE IS SOMETHING LIKE SOME 1360 00:48:24,640 --> 00:48:27,360 OF THE DCCPS INITIATIVES, RURAL 1361 00:48:27,360 --> 00:48:28,600 POPULATIONS, AREAS OF PERSISTENT 1362 00:48:28,600 --> 00:48:31,000 POVERTY, USING TELEHEALTH, WE 1363 00:48:31,000 --> 00:48:33,400 HAVE OTHER SPECIFIC FUNDING 1364 00:48:33,400 --> 00:48:35,080 ANNOUNCEMENTS THAT TRY AND 1365 00:48:35,080 --> 00:48:37,160 ADDRESS SPECIFIC POPULATIONS. 1366 00:48:37,160 --> 00:48:41,000 THOSE ARE STRATEGIES WE USED. 1367 00:48:41,000 --> 00:48:42,600 LASTLY, MAYBE AN IMPORTANT THING 1368 00:48:42,600 --> 00:48:46,080 TO MENTION, WE ARE VERY 1369 00:48:46,080 --> 00:48:47,720 INTERESTED IN USE OF CLINICAL 1370 00:48:47,720 --> 00:48:48,680 TRIALS ENROLLMENT IN THOSE 1371 00:48:48,680 --> 00:48:49,880 POPULATIONS TO MAKE SURE WHAT WE 1372 00:48:49,880 --> 00:48:51,200 LEARNED THROUGH CLINICAL TRIALS 1373 00:48:51,200 --> 00:48:52,880 IS GENERALIZABLE TO THE ENTIRE 1374 00:48:52,880 --> 00:48:53,840 AMERICAN POPULATION REGARDLESS 1375 00:48:53,840 --> 00:48:54,880 OF WHERE YOU LIVE. 1376 00:48:54,880 --> 00:48:55,560 THAT'S HARD. 1377 00:48:55,560 --> 00:48:57,840 I THINK WE TALKED ABOUT THIS IN 1378 00:48:57,840 --> 00:49:00,160 THIS GROUP BEFORE. 1379 00:49:00,160 --> 00:49:04,760 I THINK THE NCCOR PROGRAM FOR 1380 00:49:04,760 --> 00:49:06,600 THE NCI HAS SUCCESSFUL STEP IN 1381 00:49:06,600 --> 00:49:07,920 THAT DIRECTION, CERTAINLY 1382 00:49:07,920 --> 00:49:10,200 ENROLLED A MUCH MORE INTERESTING 1383 00:49:10,200 --> 00:49:12,200 GEOGRAPHICALLY AND IN TERMS OF 1384 00:49:12,200 --> 00:49:13,720 RACE AND ETHNICITY, A MORE 1385 00:49:13,720 --> 00:49:17,360 INTERESTED POPULATION THAN 1386 00:49:17,360 --> 00:49:18,800 USING TERTIARY CARE CENTER 1387 00:49:18,800 --> 00:49:20,400 NETWORKS BUT THERE'S MORE WE CAN 1388 00:49:20,400 --> 00:49:23,160 DO, AS WE DISCUSSED IN THE PAST. 1389 00:49:23,160 --> 00:49:24,640 >> THANK YOU VERY MUCH. 1390 00:49:24,640 --> 00:49:29,200 I HOPE THERE'S A WAY TO, YOU 1391 00:49:29,200 --> 00:49:31,240 KNOW, REDUCE THE MORTALITY, YOU 1392 00:49:31,240 --> 00:49:32,360 KNOW, FOR EVERYBODY. 1393 00:49:32,360 --> 00:49:33,120 THANK YOU. 1394 00:49:33,120 --> 00:49:34,680 >> YEAH, THE PRESIDENT WAS CLEAR 1395 00:49:34,680 --> 00:49:36,520 ON THAT. 1396 00:49:36,520 --> 00:49:37,600 YOU KNOW, PROMOTING HEALTH 1397 00:49:37,600 --> 00:49:39,840 EQUITY, PATIENTS IN RURAL 1398 00:49:39,840 --> 00:49:40,400 REGIONS, PATIENTS THAT ARE 1399 00:49:40,400 --> 00:49:42,960 UNDERSERVED FOR A VARIETY OF 1400 00:49:42,960 --> 00:49:44,160 REASONS, PATIENTS WHO HAVE 1401 00:49:44,160 --> 00:49:46,600 BARRIERS TO ACCESS IN TERMS OF 1402 00:49:46,600 --> 00:49:47,800 RACE AND ETHNICITY, THAT'S A 1403 00:49:47,800 --> 00:49:48,640 TREMENDOUS FOCUS OF THE WHITE 1404 00:49:48,640 --> 00:49:48,920 HOUSE. 1405 00:49:48,920 --> 00:49:50,720 >> THAT'S A GREAT POINT. 1406 00:49:50,720 --> 00:49:52,360 HOPEFULLY WE CAN INCENTIVIZE THE 1407 00:49:52,360 --> 00:49:57,600 WORK THAT WE'RE SEEING IN THOSE 1408 00:49:57,600 --> 00:49:59,000 HOT SPOTS. 1409 00:49:59,000 --> 00:50:01,560 KRISTEN, A QUESTION? 1410 00:50:01,560 --> 00:50:02,400 >> KRISTEN SANTIAGO, LONGEVITY 1411 00:50:02,400 --> 00:50:02,720 FOUNDATION. 1412 00:50:02,720 --> 00:50:05,160 I HAVE TWO QUICK COMMENTS AND A 1413 00:50:05,160 --> 00:50:05,800 QUESTION. 1414 00:50:05,800 --> 00:50:08,840 I DID PUT SOMETHING IN THE CHAT 1415 00:50:08,840 --> 00:50:10,160 AROUND TERMINOLOGY FOR BIOMARKER 1416 00:50:10,160 --> 00:50:12,200 TESTING WHICH WE'VE SHARED IN 1417 00:50:12,200 --> 00:50:15,000 THE PAST, BUT I THINK JUST WANT 1418 00:50:15,000 --> 00:50:16,200 TO REINFORCE THAT A LOT OF 1419 00:50:16,200 --> 00:50:18,160 GROUPS HERE HAVE BEEN SUPPORTIVE 1420 00:50:18,160 --> 00:50:22,200 OF USING CONSISTENT TESTING 1421 00:50:22,200 --> 00:50:23,160 TERMINOLOGY FOR BIOMARKER 1422 00:50:23,160 --> 00:50:23,440 TESTING. 1423 00:50:23,440 --> 00:50:25,200 THROWING THAT OUT THERE. 1424 00:50:25,200 --> 00:50:26,880 HAPPY TO ANSWER QUESTIONS. 1425 00:50:26,880 --> 00:50:27,560 >> KRISTEN, I DON'T UNDERSTAND 1426 00:50:27,560 --> 00:50:28,120 THE ISSUE. 1427 00:50:28,120 --> 00:50:30,000 WHAT DID I SAY WRONG? 1428 00:50:30,000 --> 00:50:31,080 >> YOU DIDN'T SAY ANYTHING 1429 00:50:31,080 --> 00:50:31,880 WRONG. 1430 00:50:31,880 --> 00:50:34,000 >> ALL RIGHT. 1431 00:50:34,000 --> 00:50:36,400 >> IT'S MORE IN THE MOONSHOT 1432 00:50:36,400 --> 00:50:37,600 ANNOUNCEMENT, IT REFERS TO 1433 00:50:37,600 --> 00:50:38,800 GENETIC TESTING BUT IS BROADER 1434 00:50:38,800 --> 00:50:40,000 THAN THAT. 1435 00:50:40,000 --> 00:50:42,400 GENETIC VERSUS GENOMIC. 1436 00:50:42,400 --> 00:50:43,400 YOU DIDN'T SAY ANYTHING WRONG. 1437 00:50:43,400 --> 00:50:45,160 >> YEAH, I DON'T KNOW, THIS IS 1438 00:50:45,160 --> 00:50:47,040 REALLY CONFUSING. 1439 00:50:47,040 --> 00:50:49,800 THANK YOU FOR THE LINK. 1440 00:50:49,800 --> 00:50:53,000 BIOMARKERS IS SO BROAD, SOME 1441 00:50:53,000 --> 00:50:53,880 SPECIFICITY IS -- 1442 00:50:53,880 --> 00:50:57,800 >> YEAH, THAT LINK, A GROUP OF 1443 00:50:57,800 --> 00:50:58,680 40 PATIENT ADVOCACY 1444 00:50:58,680 --> 00:51:01,200 ORGANIZATIONS AND INDUSTRY AND 1445 00:51:01,200 --> 00:51:01,880 TESTING COMPANIES CAME TOGETHER 1446 00:51:01,880 --> 00:51:04,720 TO SAY LIKE WE SHOULD TALK WITH 1447 00:51:04,720 --> 00:51:07,600 ONE MESSAGE BASICALLY SO THAT 1448 00:51:07,600 --> 00:51:09,520 PATIENTS KNOW WHAT TO ASK FOR 1449 00:51:09,520 --> 00:51:13,000 AND PROVIDERS IN THE COMMUNITY 1450 00:51:13,000 --> 00:51:14,880 SETTINGS CAN HAVE A BETTER WAY 1451 00:51:14,880 --> 00:51:16,200 TO COMMUNICATE THINGS. 1452 00:51:16,200 --> 00:51:20,800 IT'S A SEPARATE ISSUE. 1453 00:51:20,800 --> 00:51:21,840 WE'VE CHATTED WITH AMY BEFORE. 1454 00:51:21,840 --> 00:51:25,600 A LOT OF GROUPS ON THIS CALL ARE 1455 00:51:25,600 --> 00:51:26,560 INVOLVED IN THAT. 1456 00:51:26,560 --> 00:51:28,320 I DON'T WANT TO TAKE UP YOUR 1457 00:51:28,320 --> 00:51:30,280 TIME FOR THAT BUT HAPPY TO SET 1458 00:51:30,280 --> 00:51:31,960 UP A SEPARATE CALL ESPECIALLY 1459 00:51:31,960 --> 00:51:36,000 WITH MY COLLEAGUE NIKKI WHO RAN 1460 00:51:36,000 --> 00:51:37,160 THE PROGRAM, MAKING SURE WHEN 1461 00:51:37,160 --> 00:51:38,160 WE'RE TALKING ABOUT TYPE OF 1462 00:51:38,160 --> 00:51:40,560 TESTING TO GET THEM INTO THE 1463 00:51:40,560 --> 00:51:42,280 MOST APPROPRIATE THERAPIES THAT 1464 00:51:42,280 --> 00:51:46,080 WE USE THE MOST -- THE EASIEST 1465 00:51:46,080 --> 00:51:47,600 LANGUAGE FOR PATIENTS TO 1466 00:51:47,600 --> 00:51:50,240 UNDERSTAND IS KIND OF THE GIST 1467 00:51:50,240 --> 00:51:51,120 OF IT. 1468 00:51:51,120 --> 00:51:53,600 SO I FEEL LIKE MY COMMENT 1469 00:51:53,600 --> 00:51:54,080 SOUNDED HARSH. 1470 00:51:54,080 --> 00:51:55,960 I DIDN'T MEAN FOR IT TO BE 1471 00:51:55,960 --> 00:51:56,280 HARSH. 1472 00:51:56,280 --> 00:51:58,200 HAPPY TO HAVE A SIDE 1473 00:51:58,200 --> 00:52:01,080 CONVERSATION ABOUT THAT. 1474 00:52:01,080 --> 00:52:03,400 I'M CURIOUS ABOUT THE FEDERAL 1475 00:52:03,400 --> 00:52:05,800 CERVICAL CANCER COLLABORATIVE 1476 00:52:05,800 --> 00:52:06,680 YOU MENTIONED. 1477 00:52:06,680 --> 00:52:11,600 AND DO YOU THINK THERE'S VALUE 1478 00:52:11,600 --> 00:52:14,240 FOR DOING A LUNG CANCER ONE OR 1479 00:52:14,240 --> 00:52:19,200 DOES THAT GET TOO CRAZY TO HAVE 1480 00:52:19,200 --> 00:52:21,280 MULTIPLE SIMILAR? 1481 00:52:21,280 --> 00:52:23,200 AND LONGEVITY DOES SIMILAR WORK 1482 00:52:23,200 --> 00:52:24,680 BUT CURIOUS ON YOUR OPINIONS ON 1483 00:52:24,680 --> 00:52:26,640 THAT AND HOW CAN WE HELP IN 1484 00:52:26,640 --> 00:52:28,160 GENERAL WITH THAT. 1485 00:52:28,160 --> 00:52:29,720 >> YEAH, I THINK, YOU KNOW, 1486 00:52:29,720 --> 00:52:30,880 THAT'S AN INTERESTING 1487 00:52:30,880 --> 00:52:31,280 SUGGESTION. 1488 00:52:31,280 --> 00:52:33,080 CERTAINLY WE HAVE THOUGHT ABOUT 1489 00:52:33,080 --> 00:52:39,000 THIS OURSELVES. 1490 00:52:39,000 --> 00:52:41,160 WHEN DO THESE TRANSGOVERNMENT 1491 00:52:41,160 --> 00:52:42,440 EFFORTS BENEFIT FROM LOTS AND 1492 00:52:42,440 --> 00:52:45,600 LOTS OF PEOPLE AT THE TABLE 1493 00:52:45,600 --> 00:52:47,360 VERSUS -- WE'VE DONE FAIRLY 1494 00:52:47,360 --> 00:52:48,000 FOCUSED THINGS AROUND LUNG 1495 00:52:48,000 --> 00:52:49,640 CANCER WITH JUST THE FDA. 1496 00:52:49,640 --> 00:52:51,960 SOMETIMES THAT MAY BE A BETTER 1497 00:52:51,960 --> 00:52:52,880 APPROACH. 1498 00:52:52,880 --> 00:52:55,120 NO ONE HAS EVER ACCUSED A LARGE 1499 00:52:55,120 --> 00:52:56,560 GOVERNMENT ROUNDTABLE WITH LOTS 1500 00:52:56,560 --> 00:52:59,600 OF ACRONYMS OF BEING NIMBLE. 1501 00:52:59,600 --> 00:53:00,480 THERE'S A TRADEOFF BETWEEN, YOU 1502 00:53:00,480 --> 00:53:02,320 KNOW, BUT ALSO THE SCOPE IS 1503 00:53:02,320 --> 00:53:03,880 QUITE POWERFUL SO WHEN THAT'S 1504 00:53:03,880 --> 00:53:05,480 THE RIGHT THING TO DO IS 1505 00:53:05,480 --> 00:53:08,360 SOMETHING WE THINK A LOT ABOUT. 1506 00:53:08,360 --> 00:53:09,880 YOU KNOW, I THINK WE'RE GOING TO 1507 00:53:09,880 --> 00:53:12,280 SEE MORE OF THIS DURING THE 1508 00:53:12,280 --> 00:53:12,720 MOONSHOT. 1509 00:53:12,720 --> 00:53:15,360 I MENTIONED THE CANCER CABINET 1510 00:53:15,360 --> 00:53:15,640 KICKING OFF. 1511 00:53:15,640 --> 00:53:18,080 I THINK THERE WILL BE AN 1512 00:53:18,080 --> 00:53:19,440 INTEREST, FOR EXAMPLE, IN SOME 1513 00:53:19,440 --> 00:53:21,920 PARTS OF THE CANCER CABINET ON 1514 00:53:21,920 --> 00:53:23,880 TOPICS LIKE BURN PITS, 1515 00:53:23,880 --> 00:53:25,000 ENVIRONMENTAL EXPOSURES IN LUNG 1516 00:53:25,000 --> 00:53:27,360 CANCER, SO THAT MIGHT LEAD TO AN 1517 00:53:27,360 --> 00:53:27,960 ENVIRONMENTAL EXPOSURE LUNG 1518 00:53:27,960 --> 00:53:29,000 CANCER TYPE EFFORT. 1519 00:53:29,000 --> 00:53:32,600 I DON'T WANT TO PREDICT WHERE 1520 00:53:32,600 --> 00:53:35,200 THE CANCER CABINET IS GOING TO 1521 00:53:35,200 --> 00:53:36,400 GO BECAUSE WE HAVEN'T MET BUT IF 1522 00:53:36,400 --> 00:53:37,800 YOU THINK ABOUT WHAT ISSUES ARE 1523 00:53:37,800 --> 00:53:39,280 A GOOD FIT FOR LARGE PARTS OF 1524 00:53:39,280 --> 00:53:40,880 THE FEDERAL GOVERNMENT, YOU 1525 00:53:40,880 --> 00:53:42,000 KNOW, THAT'S PROBABLY THE RIGHT 1526 00:53:42,000 --> 00:53:43,800 WAY TO THINK ABOUT IT. 1527 00:53:43,800 --> 00:53:45,480 THE OTHER THING TO SAY ABOUT 1528 00:53:45,480 --> 00:53:48,000 THESE IS I THINK THEY REALLY 1529 00:53:48,000 --> 00:53:50,120 WORK WELL WHEN THERE IS A 1530 00:53:50,120 --> 00:53:51,920 SPECIFIC NEED THAT UNDERPINS 1531 00:53:51,920 --> 00:53:52,120 THEM. 1532 00:53:52,120 --> 00:53:53,240 IN THIS PARTICULAR COLLABORATIVE 1533 00:53:53,240 --> 00:53:55,280 ONE OF THE THINGS THAT'S REALLY 1534 00:53:55,280 --> 00:53:58,200 IMPORTANT IS THE NATIONAL POLICY 1535 00:53:58,200 --> 00:53:59,960 AROUND HPV VACCINATION WHERE 1536 00:53:59,960 --> 00:54:02,800 HRSA HAS A BIG ROLE, CMS HAS A 1537 00:54:02,800 --> 00:54:03,880 BIG ROLE, STATE AND LOCAL 1538 00:54:03,880 --> 00:54:06,360 AUTHORITIES HAVE A BIG ROLE. 1539 00:54:06,360 --> 00:54:07,840 THAT MAKES THIS COLLABORATIVE 1540 00:54:07,840 --> 00:54:09,080 PARTICULARLY USEFUL IN THIS 1541 00:54:09,080 --> 00:54:09,320 REGARD. 1542 00:54:09,320 --> 00:54:10,160 I'M NOT SAYING THERE AREN'T 1543 00:54:10,160 --> 00:54:13,200 ISSUES LIKE THAT AROUND OTHER 1544 00:54:13,200 --> 00:54:13,520 MALIGNANCIES. 1545 00:54:13,520 --> 00:54:16,880 LUNG CANCER SCREENING, FOR 1546 00:54:16,880 --> 00:54:18,120 WOULD LOVE SOME HELP. 1547 00:54:18,120 --> 00:54:21,960 BUT I THINK THAT, FOR EXAMPLE, 1548 00:54:21,960 --> 00:54:24,320 IS WHY THAT COLLABORATION 1549 00:54:24,320 --> 00:54:25,360 (INDISCERNIBLE) CERVICAL CANCER. 1550 00:54:25,360 --> 00:54:25,920 >> THAT'S HELPFUL. 1551 00:54:25,920 --> 00:54:29,520 >> I DIDN'T HEAR WHAT YOU SAID. 1552 00:54:29,520 --> 00:54:31,240 >> I WAS GOING TO SAY HIGHLIGHT 1553 00:54:31,240 --> 00:54:37,960 SCREENING AS WELL. 1554 00:54:37,960 --> 00:54:38,200 >> YEAH. 1555 00:54:38,200 --> 00:54:39,760 WE DEFINITELY ARE THINK ABOUT 1556 00:54:39,760 --> 00:54:41,120 LOTS OF WAYS TO INCREASE 1557 00:54:41,120 --> 00:54:42,480 SCREENING UPTAKE, WHICH HAS BEEN 1558 00:54:42,480 --> 00:54:42,800 DISAPPOINTED. 1559 00:54:42,800 --> 00:54:44,040 I DON'T UNDERSTAND WHY. 1560 00:54:44,040 --> 00:54:45,160 I WOULD HAVE EXPECTED ACADEMIC 1561 00:54:45,160 --> 00:54:46,000 MEDICAL CENTERS AND LARGE 1562 00:54:46,000 --> 00:54:47,760 MEDICAL CENTERS TO PICK THIS UP 1563 00:54:47,760 --> 00:54:49,400 MORE AND WE'VE BEEN ASKING LOTS 1564 00:54:49,400 --> 00:54:51,040 OF QUESTIONS ABOUT ARE THERE 1565 00:54:51,040 --> 00:54:52,000 CERTAIN THINGS LIKE SHARED 1566 00:54:52,000 --> 00:54:55,760 DECISION MAKING THAT LIMIT THE 1567 00:54:55,760 --> 00:54:56,000 UPTAKE. 1568 00:54:56,000 --> 00:54:57,920 THAT'S A REALLY IMPORTANT TOPIC 1569 00:54:57,920 --> 00:54:59,560 WHERE OTHER PARTS OF GOVERNMENT 1570 00:54:59,560 --> 00:55:01,200 COULD BE HELPFUL. 1571 00:55:01,200 --> 00:55:04,680 >> BEFORE I CALL ON VICKIE, ONE 1572 00:55:04,680 --> 00:55:06,560 THING ON THE COUNCIL OR 1573 00:55:06,560 --> 00:55:06,880 COLLABORATIVE. 1574 00:55:06,880 --> 00:55:09,200 I THINK THERE MIGHT BE AN 1575 00:55:09,200 --> 00:55:11,440 OPPORTUNITY FOR THE MULTI-CANCER 1576 00:55:11,440 --> 00:55:13,200 BLOOD TEST, THAT'S GOING TO 1577 00:55:13,200 --> 00:55:14,560 IMPACT MULTIPLE CANCERS AND 1578 00:55:14,560 --> 00:55:15,760 WE'LL BE TREADING ON NEW GROUND 1579 00:55:15,760 --> 00:55:18,680 AND HOW WE'RE GOING TO NAVIGATE 1580 00:55:18,680 --> 00:55:21,200 FROM THE SCIENCE, ALSO 1581 00:55:21,200 --> 00:55:22,920 IMPLEMENTATION SCIENCE. 1582 00:55:22,920 --> 00:55:24,560 I'M NOT SURE WHAT NCI IS 1583 00:55:24,560 --> 00:55:27,760 THINKING AS RELATES TO THE 1584 00:55:27,760 --> 00:55:29,200 MULTI-CANCER BLOOD TEST BEYOND 1585 00:55:29,200 --> 00:55:31,400 THE RESEARCH, BUT HOW IT'S GOING 1586 00:55:31,400 --> 00:55:32,640 TO APPROACH THAT AND ARE YOU 1587 00:55:32,640 --> 00:55:34,880 WORKING WITH FDA ON HOW THAT'S 1588 00:55:34,880 --> 00:55:36,040 GOING TO BE EXECUTED ON? 1589 00:55:36,040 --> 00:55:37,400 >> YEAH, IT'S A REALLY 1590 00:55:37,400 --> 00:55:38,400 INTERESTING TOPIC. 1591 00:55:38,400 --> 00:55:41,000 THE NCI HAS BEEN THINKING ABOUT 1592 00:55:41,000 --> 00:55:41,960 THIS A LOT. 1593 00:55:41,960 --> 00:55:46,000 WE HAVE KIND OF AN INTERNAL TEAM 1594 00:55:46,000 --> 00:55:48,280 LED BY PHIL CASTLE AND OTHERS, I 1595 00:55:48,280 --> 00:55:49,800 THINK AT SOME FUTURE DATE I 1596 00:55:49,800 --> 00:55:50,840 WOULD LIKE THEM TO GIVE A 1597 00:55:50,840 --> 00:55:52,440 PRESENTATION TO THIS GROUP AND 1598 00:55:52,440 --> 00:55:53,120 OUR OTHER BOARDS. 1599 00:55:53,120 --> 00:55:55,080 WHEN THE TIME IS RIGHT, THIS IS 1600 00:55:55,080 --> 00:55:57,400 ONE OF THE THINGS THE PRESIDENT 1601 00:55:57,400 --> 00:55:58,240 SPECIFICALLY MENTIONED, THAT'S A 1602 00:55:58,240 --> 00:56:00,720 CLUE THE NCI IS GOING TO WORK 1603 00:56:00,720 --> 00:56:00,880 OUT. 1604 00:56:00,880 --> 00:56:02,280 BUT I THINK WE SHOULD. 1605 00:56:02,280 --> 00:56:05,120 IT'S A REAL OPPORTUNITY TO 1606 00:56:05,120 --> 00:56:06,680 CHANGE, END CANCER AS WE KNOW 1607 00:56:06,680 --> 00:56:08,280 IT, CHANGE THE NATIONAL 1608 00:56:08,280 --> 00:56:10,480 EXPERIENCE AND AFFECT THE 1609 00:56:10,480 --> 00:56:11,400 NATIONAL POPULATION MORTALITY 1610 00:56:11,400 --> 00:56:12,800 STATISTICS, BUT THERE ARE A LOT 1611 00:56:12,800 --> 00:56:15,960 OF IMPORTANT SCIENTIFIC ISSUES 1612 00:56:15,960 --> 00:56:17,040 AS I MENTIONED, DIAGNOSIS AND 1613 00:56:17,040 --> 00:56:17,480 TREATMENT. 1614 00:56:17,480 --> 00:56:22,200 I WILL BE SHOCKED, VERY 1615 00:56:22,200 --> 00:56:23,680 SURPRISED, IF THIS ISN'T A TOPIC 1616 00:56:23,680 --> 00:56:24,960 MUCH GREAT INTEREST AT THE 1617 00:56:24,960 --> 00:56:26,000 CANCER CABINET BECAUSE I KNOW 1618 00:56:26,000 --> 00:56:27,960 DoD IS INTERESTED IN THIS, 1619 00:56:27,960 --> 00:56:30,320 V.A. IS INTERESTED IN THIS. 1620 00:56:30,320 --> 00:56:31,600 I THINK CDC IS OBVIOUSLY 1621 00:56:31,600 --> 00:56:33,640 INTERESTED IN THIS. 1622 00:56:33,640 --> 00:56:35,040 THE FDA IS STUCK WITH REGULATING 1623 00:56:35,040 --> 00:56:37,120 THESE TESTS WHICH IS A 1624 00:56:37,120 --> 00:56:38,840 COMPLICATE ENDEAVOR, THEY ARE 1625 00:56:38,840 --> 00:56:39,280 INTERESTED IN THIS. 1626 00:56:39,280 --> 00:56:40,960 THERE ARE A LOT OF PARTS OF 1627 00:56:40,960 --> 00:56:43,000 GOVERNMENT THAT HAVE TO THINK 1628 00:56:43,000 --> 00:56:45,320 THROUGH THIS, AND I THINK WHAT'S 1629 00:56:45,320 --> 00:56:47,000 IN IT FOR NCI, THERE'S RESEARCH 1630 00:56:47,000 --> 00:56:50,200 QUESTIONS THAT NEED TO BE 1631 00:56:50,200 --> 00:56:50,480 ADDRESSED. 1632 00:56:50,480 --> 00:56:52,360 IF WE CAN FIGURE OUT RESEARCH 1633 00:56:52,360 --> 00:56:54,280 QUESTIONS THAT WILL HELP WITH 1634 00:56:54,280 --> 00:56:55,200 TRIAL DESIGN. 1635 00:56:55,200 --> 00:56:57,520 I DON'T THINK THE NCI IS GOING 1636 00:56:57,520 --> 00:56:58,840 TO DESIGN ONE OR TWO TRIALS. 1637 00:56:58,840 --> 00:57:00,480 I THINK WE'LL HAVE MANY KINDS OF 1638 00:57:00,480 --> 00:57:02,160 LARGE CLINICAL TRIALS BUT ALSO 1639 00:57:02,160 --> 00:57:06,080 SMALLER GRANTS THAT ARE METHODS 1640 00:57:06,080 --> 00:57:09,240 AND TECHNOLOGY DEVELOPMENT. 1641 00:57:09,240 --> 00:57:09,600 >> VICKIE? 1642 00:57:09,600 --> 00:57:10,160 >> THANK YOU. 1643 00:57:10,160 --> 00:57:12,080 IT'S GOOD TO GO TO A MEETING 1644 00:57:12,080 --> 00:57:14,400 THAT HAS SO MUCH GOOD NEWS IN 1645 00:57:14,400 --> 00:57:20,000 IT, BOTH ON THE APPROPRIATIONS 1646 00:57:20,000 --> 00:57:21,200 FRONT AND MOONSHOT. 1647 00:57:21,200 --> 00:57:24,640 A THING THAT STRUCK ME ABOUT THE 1648 00:57:24,640 --> 00:57:25,200 REINVIGORATED MOONSHOT, HOW 1649 00:57:25,200 --> 00:57:27,200 BROAD IT IS IN THE PILLARS AND 1650 00:57:27,200 --> 00:57:28,560 IN THE WAY THE CANCER CABINET'S 1651 00:57:28,560 --> 00:57:31,040 GOING TO BE SET UP. 1652 00:57:31,040 --> 00:57:34,800 MY GENTLEMEN IS -- QUESTION IS 1653 00:57:34,800 --> 00:57:38,240 TRYING TO ANTICIPATE HOW 1654 00:57:38,240 --> 00:57:40,920 ADVOCATES LIKE US CAN HELP AND 1655 00:57:40,920 --> 00:57:46,440 WHETHER THERE'S ANY, YOU KNOW, 1656 00:57:46,440 --> 00:57:47,720 ROADMAP THAT LETS US ONBOARD TO 1657 00:57:47,720 --> 00:57:50,400 BE IN SUPPORT OF THE WORK THAT'S 1658 00:57:50,400 --> 00:57:52,360 BEING DONE. 1659 00:57:52,360 --> 00:57:53,800 >> YEAH, NO, THAT'S AN IMPORTANT 1660 00:57:53,800 --> 00:57:54,120 QUESTION. 1661 00:57:54,120 --> 00:57:56,800 WE STARTED TO THINK ABOUT THAT. 1662 00:57:56,800 --> 00:57:58,800 THERE HAVE BEEN LISTENING 1663 00:57:58,800 --> 00:58:00,600 SESSION, OSTP INCLUDED MEMBERS 1664 00:58:00,600 --> 00:58:02,040 OF THE ADVOCACY, I THINK THERE 1665 00:58:02,040 --> 00:58:03,400 WILL BE MORE OF THAT. 1666 00:58:03,400 --> 00:58:06,640 I THINK WHAT'S GOING TO HAPPEN 1667 00:58:06,640 --> 00:58:08,520 IS THE NEXT COUPLE MONTHS, MAYBE 1668 00:58:08,520 --> 00:58:11,480 THE NEXT YEAR, IS GOING TO BE AN 1669 00:58:11,480 --> 00:58:12,920 INTENSE PLANNING GROUP. 1670 00:58:12,920 --> 00:58:15,240 I THINK THERE ISN'T SPECIFICALLY 1671 00:58:15,240 --> 00:58:17,880 A NEW APPROPRIATION FOR MOONSHOT 1672 00:58:17,880 --> 00:58:19,400 IN 22 BUDGET, JUST PLANNED 1673 00:58:19,400 --> 00:58:22,760 APPROPRIATION AT THE END OF 21ST 1674 00:58:22,760 --> 00:58:23,960 CENTURY CURES, THAT WILL PROVIDE 1675 00:58:23,960 --> 00:58:26,040 TIME TO THINK WHAT SHOULD WE DO 1676 00:58:26,040 --> 00:58:27,240 RIGHT NOW, IMMEDIATELY, THINGS 1677 00:58:27,240 --> 00:58:28,240 WE HAVE TO START YESTERDAY 1678 00:58:28,240 --> 00:58:31,200 VERSUS WHAT ARE THINGS WE HAVE 1679 00:58:31,200 --> 00:58:33,040 THINK THROUGH AND START AS NEW 1680 00:58:33,040 --> 00:58:33,640 APPROPRIATION FOR CANCER 1681 00:58:33,640 --> 00:58:35,240 RESEARCH IN THE FUTURE. 1682 00:58:35,240 --> 00:58:37,160 I SUSPECT THAT BOTH OF THOSE 1683 00:58:37,160 --> 00:58:38,360 QUESTIONS ARE AREAS WHERE WE'LL 1684 00:58:38,360 --> 00:58:41,360 BE INTERESTED IN HAVING ADVOCACY 1685 00:58:41,360 --> 00:58:41,720 WEIGH IN. 1686 00:58:41,720 --> 00:58:44,240 THAT WILL BE LOTS OF WAYS, 1687 00:58:44,240 --> 00:58:45,880 THROUGH BOARDS LIKE THIS, FACA 1688 00:58:45,880 --> 00:58:48,000 COMMITTEES TO TALK TO NCI AND 1689 00:58:48,000 --> 00:58:49,720 OTHER PARTS OF GOVERNMENT, 1690 00:58:49,720 --> 00:58:51,600 THROUGH RFIS WE'LL ISSUE, SO WE 1691 00:58:51,600 --> 00:58:53,760 WILL POINT THOSE OUT WHEN THEY 1692 00:58:53,760 --> 00:58:54,760 BECOME RELEVANT, THROUGH 1693 00:58:54,760 --> 00:58:55,960 EDUCATIONAL MEETINGS AND OTHER 1694 00:58:55,960 --> 00:58:58,080 CONVERSATIONS. 1695 00:58:58,080 --> 00:59:00,560 THIS IS AN AREA WHERE, YOU KNOW, 1696 00:59:00,560 --> 00:59:02,280 THE VOICE OF ADVOCACY IS VERY 1697 00:59:02,280 --> 00:59:02,800 IMPORTANT. 1698 00:59:02,800 --> 00:59:05,560 YOU CAN ALREADY SEE THAT THERE'S 1699 00:59:05,560 --> 00:59:10,000 THIS FOCUS ON CANCER AT THE 1700 00:59:10,000 --> 00:59:11,120 POPULATION LEVEL IN AMERICA. 1701 00:59:11,120 --> 00:59:13,440 THAT'S NOT THE ONLY FOCUS. 1702 00:59:13,440 --> 00:59:15,760 THERE WILL ALSO BE, YOU KNOW, A 1703 00:59:15,760 --> 00:59:17,560 FOCUS ON OTHER ASPECTS OF CANCER 1704 00:59:17,560 --> 00:59:19,160 RESEARCH AND CANCER CARE 1705 00:59:19,160 --> 00:59:20,120 DELIVERY, AND GETTING THAT 1706 00:59:20,120 --> 00:59:21,600 BALANCE RIGHT WILL BE IMPORTANT, 1707 00:59:21,600 --> 00:59:23,400 WILL BE REALLY AN AREA WHERE 1708 00:59:23,400 --> 00:59:28,080 ADVOCACY CAN BE PARTICULARLY 1709 00:59:28,080 --> 00:59:28,880 IMPORTANT. 1710 00:59:28,880 --> 00:59:30,280 >> THANK YOU FOR YOUR 1711 00:59:30,280 --> 00:59:30,600 PRESENTATION. 1712 00:59:30,600 --> 00:59:31,800 AND WE REALLY APPRECIATE YOU 1713 00:59:31,800 --> 00:59:33,000 ANSWERING OUR QUESTIONS. 1714 00:59:33,000 --> 00:59:34,680 WE LOOK FORWARD TO THIS EVERY 1715 00:59:34,680 --> 00:59:36,960 TIME WE HAVE THESE MEETINGS. 1716 00:59:36,960 --> 00:59:41,520 I'M GOING TO WELCOME FROM DCCPS 1717 00:59:41,520 --> 00:59:43,520 THE DIRECTOR'S UPDATE, DR. 1718 00:59:43,520 --> 00:59:44,800 KATRINA GODDARD, DIRECTOR OF 1719 00:59:44,800 --> 00:59:47,040 DIVISION OF CANCER CONTROL AND 1720 00:59:47,040 --> 00:59:47,920 POPULATION SCIENCES, INVITING 1721 00:59:47,920 --> 00:59:49,760 HER TO DELIVER HER UPDATE. 1722 00:59:49,760 --> 00:59:52,240 THIS IS HER FIRST PRESENTATION 1723 00:59:52,240 --> 00:59:52,800 TO OUR GROUP. 1724 00:59:52,800 --> 00:59:55,320 AS A PART OF NCI. 1725 00:59:55,320 --> 00:59:55,600 SO WELCOME. 1726 00:59:55,600 --> 00:59:58,800 THANK YOU FOR JOINING US. 1727 00:59:58,800 --> 01:00:00,800 >> THIS IS ONE OF KATRINA'S 1728 01:00:00,800 --> 01:00:01,880 FIRST PRESENTATIONS PERIOD. 1729 01:00:01,880 --> 01:00:02,760 >> YES. 1730 01:00:02,760 --> 01:00:03,240 >> OH, EXCELLENT. 1731 01:00:03,240 --> 01:00:04,920 TO THE RIGHT GROUP. 1732 01:00:04,920 --> 01:00:07,320 >> TO THE RIGHT GROUP. 1733 01:00:07,320 --> 01:00:07,680 >> THANK YOU. 1734 01:00:07,680 --> 01:00:08,000 >> RIGHT. 1735 01:00:08,000 --> 01:00:09,520 THANK YOU SO MUCH. 1736 01:00:09,520 --> 01:00:11,040 I'M REALLY HAPPY TO BE HERE AND 1737 01:00:11,040 --> 01:00:13,200 HAVE THE CHANCE TO SPEAK WITH 1738 01:00:13,200 --> 01:00:15,040 YOU ALL TODAY AND GIVE YOU AN 1739 01:00:15,040 --> 01:00:18,400 UPDATE ON OUR DIVISION. 1740 01:00:18,400 --> 01:00:18,800 NEXT SLIDE. 1741 01:00:18,800 --> 01:00:22,600 I WANTED TO START OFF AND JUST 1742 01:00:22,600 --> 01:00:26,480 BEGIN WITH AN OVERVIEW OF THE 1743 01:00:26,480 --> 01:00:27,000 DIVISION. 1744 01:00:27,000 --> 01:00:28,000 NEXT SLIDE. 1745 01:00:28,000 --> 01:00:30,400 I'M JUST BEGINNING THE FIFTH 1746 01:00:30,400 --> 01:00:32,600 MONTH IN THIS JOB AT NCI. 1747 01:00:32,600 --> 01:00:35,320 AND ONE OF THE QUESTIONS THAT 1748 01:00:35,320 --> 01:00:37,600 I'VE BEEN GETTING THE MOST IS 1749 01:00:37,600 --> 01:00:39,400 WHAT IS CANCER CONTROL? 1750 01:00:39,400 --> 01:00:42,320 SO, I JUST WANTED TO START OFF 1751 01:00:42,320 --> 01:00:45,600 WITH A LITTLE BIT ABOUT HOW WE 1752 01:00:45,600 --> 01:00:47,960 VIEW CANCER CONTROL FROM OUR 1753 01:00:47,960 --> 01:00:48,880 DIVISION'S PERSPECTIVE. 1754 01:00:48,880 --> 01:00:51,000 SO, IN A NUTSHELL WE THINK OF 1755 01:00:51,000 --> 01:00:53,680 CANCER CONTROL AS REDUCING THE 1756 01:00:53,680 --> 01:00:54,680 POPULATION BURDEN FROM CANCER. 1757 01:00:54,680 --> 01:00:56,640 THERE ARE MANY WAYS THAT WE CAN 1758 01:00:56,640 --> 01:00:58,800 REDUCE THIS BURDEN AND WE THINK 1759 01:00:58,800 --> 01:01:01,720 OF THIS ALONG THE CANCER CONTROL 1760 01:01:01,720 --> 01:01:02,560 CONTINUUM. 1761 01:01:02,560 --> 01:01:04,440 SO OUR DIVISION ACTUALLY FOCUSES 1762 01:01:04,440 --> 01:01:07,400 ON ALL OF THESE AREAS BEGINNING 1763 01:01:07,400 --> 01:01:08,240 WITH UNDERSTANDING THE 1764 01:01:08,240 --> 01:01:11,000 UNDERLYING ETIOLOGY AND RISK 1765 01:01:11,000 --> 01:01:14,800 FACTORS THAT INCREASE RISK FOR 1766 01:01:14,800 --> 01:01:15,680 CANCER. 1767 01:01:15,680 --> 01:01:17,800 UNDERSTANDING DIFFERENT WAYS OF 1768 01:01:17,800 --> 01:01:20,640 PREVENTION AND HOW WE CAN REDUCE 1769 01:01:20,640 --> 01:01:23,880 GETTING CANCER IN THE FIRST 1770 01:01:23,880 --> 01:01:24,320 PLACE. 1771 01:01:24,320 --> 01:01:26,600 THINKING ABOUT DIFFERENT WAYS TO 1772 01:01:26,600 --> 01:01:29,400 DETECT CANCER EARLY, SO THAT WE 1773 01:01:29,400 --> 01:01:30,920 ARE ABLE TO INTERVENE SOONER AND 1774 01:01:30,920 --> 01:01:34,160 HOPEFULLY HAVE A BETTER OUTCOME 1775 01:01:34,160 --> 01:01:36,680 IN TERMS OF DIAGNOSIS, CONCERNS 1776 01:01:36,680 --> 01:01:39,600 ABOUT BOTH UNDERDIAGNOSED, AS 1777 01:01:39,600 --> 01:01:40,920 WELL AS OVERDIAGNOSIS, BECAUSE 1778 01:01:40,920 --> 01:01:43,200 THE BURDEN OF CANCER IS 1779 01:01:43,200 --> 01:01:44,840 PERCEIVED IN BOTH WAYS. 1780 01:01:44,840 --> 01:01:46,920 IN TERMS OF TREATMENT NOT ONLY 1781 01:01:46,920 --> 01:01:49,360 WANTING TO ENSURE THAT WE HAVE 1782 01:01:49,360 --> 01:01:50,520 EFFECTIVE TREATMENTS FOR 1783 01:01:50,520 --> 01:01:52,760 PATIENTS BUT ALSO TRYING TO 1784 01:01:52,760 --> 01:01:54,600 MINIMIZE THE SIDE EFFECTS FROM 1785 01:01:54,600 --> 01:01:57,200 THOSE TREATMENTS AND OTHER HARMS 1786 01:01:57,200 --> 01:01:58,160 THAT HAPPEN FROM TREATMENT, 1787 01:01:58,160 --> 01:02:00,960 INCLUDING SHORT-TERM AS WELL AS 1788 01:02:00,960 --> 01:02:01,440 LONG-TERM IMPACTS. 1789 01:02:01,440 --> 01:02:03,560 AND THEN IN THE NEXT 1790 01:02:03,560 --> 01:02:05,760 PRESENTATION EMILY IS GOING TO 1791 01:02:05,760 --> 01:02:07,920 FOCUS ON THE FOCUS IN OUR 1792 01:02:07,920 --> 01:02:09,360 DIVISION ON SURVIVORSHIP, SO I'M 1793 01:02:09,360 --> 01:02:13,280 NOT GOING TO FOCUS ON THAT IN MY 1794 01:02:13,280 --> 01:02:13,800 PRESENTATION BUT THAT'S 1795 01:02:13,800 --> 01:02:16,560 CERTAINLY PART OF THE CONTINUUM. 1796 01:02:16,560 --> 01:02:19,800 WE ALSO NEED TO THINK ABOUT 1797 01:02:19,800 --> 01:02:23,320 CROSS-CUTTING AREAS ACROSS THIS 1798 01:02:23,320 --> 01:02:24,440 ENTIRE CONTINUUM, SO 1799 01:02:24,440 --> 01:02:26,720 COMMUNICATION, NOT JUST BETWEEN 1800 01:02:26,720 --> 01:02:29,920 PROVIDERS, BETWEEN THE PROVIDER 1801 01:02:29,920 --> 01:02:32,800 AND THE PATIENT, IN TERMS OF 1802 01:02:32,800 --> 01:02:33,360 HEALTH SYSTEMS AND ALSO 1803 01:02:33,360 --> 01:02:34,800 COMMUNICATING TO THE PUBLIC. 1804 01:02:34,800 --> 01:02:38,840 I THINK THERE'S A LOT OF 1805 01:02:38,840 --> 01:02:40,000 DIFFERENT COMMUNICATION ISSUES, 1806 01:02:40,000 --> 01:02:40,680 INCLUDING MISINFORMATION, THAT 1807 01:02:40,680 --> 01:02:43,960 WE REALLY NEED TO PAY ATTENTION 1808 01:02:43,960 --> 01:02:44,200 TO. 1809 01:02:44,200 --> 01:02:45,920 CONDUCTING SURVEILLANCE, SO THAT 1810 01:02:45,920 --> 01:02:52,280 WE ARE FACING OUR WORK ON STRONG 1811 01:02:52,280 --> 01:02:52,920 DATA. 1812 01:02:52,920 --> 01:02:54,120 AND PARTICULARLY FOCUSING ON 1813 01:02:54,120 --> 01:02:56,000 HEALTH DISPARITIES, I THINK THIS 1814 01:02:56,000 --> 01:02:59,320 IS AN AREA OF STRONG INTEREST 1815 01:02:59,320 --> 01:03:02,920 FOR MANY PEOPLE. 1816 01:03:02,920 --> 01:03:04,880 AND I WON'T GO THROUGH THE AREAS 1817 01:03:04,880 --> 01:03:07,920 BUT THERE ARE A LOT OF 1818 01:03:07,920 --> 01:03:09,400 CROSS-CUTTING ISSUES THAT WE 1819 01:03:09,400 --> 01:03:14,600 FOCUS ON ACROSS THE ENTIRE 1820 01:03:14,600 --> 01:03:16,000 CONTINUUM. 1821 01:03:16,000 --> 01:03:17,440 NEXT SLIDE. 1822 01:03:17,440 --> 01:03:20,320 SO, DCCPS IS DIVIDED INTO SEVEN 1823 01:03:20,320 --> 01:03:21,200 PROGRAMS AND OFFICES. 1824 01:03:21,200 --> 01:03:23,400 AND THAT'S HOW WE ORGANIZE OUR 1825 01:03:23,400 --> 01:03:25,680 WORK. 1826 01:03:25,680 --> 01:03:27,520 EACH PROGRAM REALLY FOCUSES ON 1827 01:03:27,520 --> 01:03:28,960 DEVELOPING A RESEARCH AGENDA 1828 01:03:28,960 --> 01:03:32,440 WITHIN THAT AREA, AS WELL AS 1829 01:03:32,440 --> 01:03:33,320 ESTABLISHING PARTNERSHIPS AND 1830 01:03:33,320 --> 01:03:35,600 COLLABORATIONS, SO THAT WE'RE 1831 01:03:35,600 --> 01:03:39,200 WORKING TOGETHER WITH OTHER 1832 01:03:39,200 --> 01:03:41,280 FEDERAL AGENCIES, WITH OTHER 1833 01:03:41,280 --> 01:03:42,680 ORGANIZATIONS, AND REALLY 1834 01:03:42,680 --> 01:03:44,880 FITTING NCI WITHIN THE ENTIRE 1835 01:03:44,880 --> 01:03:45,200 ECOSYSTEM. 1836 01:03:45,200 --> 01:03:47,200 WE HAVE A PARTICULAR ROLE OF 1837 01:03:47,200 --> 01:03:49,680 CONDUCTING RESEARCH BUT WE WANT 1838 01:03:49,680 --> 01:03:53,200 THAT RESEARCH TO INFORM POLICY 1839 01:03:53,200 --> 01:03:54,120 TO INFORM GUIDELINES OF 1840 01:03:54,120 --> 01:03:55,880 RECOMMENDATIONS AND TO INFORM 1841 01:03:55,880 --> 01:03:56,800 HOW CARE IS DELIVERED. 1842 01:03:56,800 --> 01:03:58,640 SO JUST TO GIVE A COUPLE 1843 01:03:58,640 --> 01:04:02,560 EXAMPLES HERE WE HAVE A REALLY 1844 01:04:02,560 --> 01:04:03,440 STRONG BEHAVIORAL RESEARCH 1845 01:04:03,440 --> 01:04:06,000 BRANCH, REALLY FOCUSING ON 1846 01:04:06,000 --> 01:04:06,960 THINGS LIKE COMMUNICATION, 1847 01:04:06,960 --> 01:04:09,120 MISINFORMATION, AS WELL AS 1848 01:04:09,120 --> 01:04:11,320 MODIFIABLE RISK FACTORS LIKE 1849 01:04:11,320 --> 01:04:15,800 SMOKING, AND DIET, AND EXERCISE, 1850 01:04:15,800 --> 01:04:16,800 FOR INSTANCE. 1851 01:04:16,800 --> 01:04:20,120 AND THEN SURVEILLANCE, WE HAVE 1852 01:04:20,120 --> 01:04:22,040 VERY STRONG PROGRAM. 1853 01:04:22,040 --> 01:04:24,600 MANY PEOPLE RECOGNIZE THE SEER 1854 01:04:24,600 --> 01:04:26,880 PROGRAM AND CISNET PROGRAM THAT 1855 01:04:26,880 --> 01:04:28,720 PROVIDE A FOUNDATION OF DATA TO 1856 01:04:28,720 --> 01:04:32,200 HELP US UNDERSTAND WHEN WE'RE 1857 01:04:32,200 --> 01:04:33,200 MAKING PROGRESS AGAINST CANCER, 1858 01:04:33,200 --> 01:04:37,480 AND AREAS WHERE WE MAY NEED TO 1859 01:04:37,480 --> 01:04:38,800 FOCUS OUR ATTENTION AND SUPPORT 1860 01:04:38,800 --> 01:04:45,280 RESEARCH IN THOSE AREAS FURTHER. 1861 01:04:45,280 --> 01:04:46,880 NEXT SLIDE. 1862 01:04:46,880 --> 01:04:50,280 MY TALK TODAY IS ORGANIZED 1863 01:04:50,280 --> 01:04:51,600 BROADLY AROUND SEVERAL HOT 1864 01:04:51,600 --> 01:04:53,400 TOPICS IN CANCER CONTROL. 1865 01:04:53,400 --> 01:04:56,560 AND BEGINNING WITH HEALTH EQUITY 1866 01:04:56,560 --> 01:04:59,480 AND HOW DO WE SERVE COMMUNITIES 1867 01:04:59,480 --> 01:05:03,040 ACROSS THE UNITED STATES AND 1868 01:05:03,040 --> 01:05:05,760 REALLY MAKE SURE THAT 1869 01:05:05,760 --> 01:05:08,160 EVIDENCE-BASED CARE IS AVAILABLE 1870 01:05:08,160 --> 01:05:10,160 TO ALL AMERICANS. 1871 01:05:10,160 --> 01:05:13,800 DATA SCIENCE IS A VERY EXCITING 1872 01:05:13,800 --> 01:05:17,600 OPPORTUNITY WITH ARTIFICIAL 1873 01:05:17,600 --> 01:05:18,760 INTELLIGENCE, MACHINE LEARNING, 1874 01:05:18,760 --> 01:05:21,360 AND DIGITAL SYSTEMS THAT ARE 1875 01:05:21,360 --> 01:05:23,920 REALLY ENABLING US TO DO REALLY 1876 01:05:23,920 --> 01:05:27,400 NEW THINGS AROUND CANCER 1877 01:05:27,400 --> 01:05:27,960 CONTROL. 1878 01:05:27,960 --> 01:05:29,800 LIFESTYLE FACTORS ARE INCREDIBLY 1879 01:05:29,800 --> 01:05:33,320 IMPORTANT IN TERMS OF THE 1880 01:05:33,320 --> 01:05:34,200 CONTRIBUTION TO RISK TO CANCER, 1881 01:05:34,200 --> 01:05:37,760 SO THIS IS SOMETHING WE NEED TO 1882 01:05:37,760 --> 01:05:41,680 CONTINUE TO FOCUS ON, BIOMARKERS 1883 01:05:41,680 --> 01:05:45,600 AND EARLY DETECTION, AS WELL AS 1884 01:05:45,600 --> 01:05:46,320 REDUCING OVERDIAGNOSIS AND 1885 01:05:46,320 --> 01:05:46,640 OVERTREATMENT. 1886 01:05:46,640 --> 01:05:49,600 I WANT TO TALK ABOUT THE IMPACT 1887 01:05:49,600 --> 01:05:51,560 OF ENVIRONMENTAL FACTORS 1888 01:05:51,560 --> 01:05:53,200 INCLUDING CLIMATE CHANGE, EMILY 1889 01:05:53,200 --> 01:05:56,600 WILL FOCUS ON THE SURVIVORSHIP 1890 01:05:56,600 --> 01:06:01,400 CARE MODELS, AND IMPROVING 1891 01:06:01,400 --> 01:06:02,160 COMMUNICATION. 1892 01:06:02,160 --> 01:06:02,440 NEXT SLIDE. 1893 01:06:02,440 --> 01:06:05,200 FIRST I WANT TO START OFF WITH 1894 01:06:05,200 --> 01:06:07,800 HOW WE THINK ABOUT PARTICIPANT 1895 01:06:07,800 --> 01:06:12,560 ENGAGEMENT WITHIN OUR DIVISION. 1896 01:06:12,560 --> 01:06:14,200 NEXT SLIDE. 1897 01:06:14,200 --> 01:06:15,960 SO WE REALLY VIEW PARTICIPANT 1898 01:06:15,960 --> 01:06:18,000 ENGAGEMENT AS SOMETHING THAT 1899 01:06:18,000 --> 01:06:21,720 NEEDS TO BE ONGOING, NOT JUST AT 1900 01:06:21,720 --> 01:06:24,720 A PARTICULAR POINT IN TIME IN 1901 01:06:24,720 --> 01:06:28,000 THE RESEARCH THAT'S HAPPENING. 1902 01:06:28,000 --> 01:06:30,760 IT'S BIDIRECTIONAL, SO THERE'S 1903 01:06:30,760 --> 01:06:32,000 COMMUNICATION THE PARTICIPANT TO 1904 01:06:32,000 --> 01:06:35,440 THE RESEARCH TEAM AND ALSO BEING 1905 01:06:35,440 --> 01:06:39,480 REALLY EMBEDDED IN PART OF THE 1906 01:06:39,480 --> 01:06:40,800 RESEARCH TEAM AS WELL AS 1907 01:06:40,800 --> 01:06:46,240 COMMUNICATION BACK BACK FROM 1908 01:06:46,240 --> 01:06:47,680 RESEARCH TO THE COMMUNITIES AND 1909 01:06:47,680 --> 01:06:48,000 PARTICIPANTS. 1910 01:06:48,000 --> 01:06:49,960 WE WANT TO SEE PARTICIPANTS 1911 01:06:49,960 --> 01:06:51,480 BEING AN INTEGRAL PART OF ALL 1912 01:06:51,480 --> 01:06:52,400 PHASES OF RESEARCH. 1913 01:06:52,400 --> 01:06:55,880 MY BACKGROUND, I WAS TRAINED AS 1914 01:06:55,880 --> 01:06:57,800 A BIOSTATISTICIAN, WHICH IS 1915 01:06:57,800 --> 01:07:00,400 REALLY A PERSON DOING THE NUMBER 1916 01:07:00,400 --> 01:07:03,000 CRUNCHING AND ANALYZING DATA AND 1917 01:07:03,000 --> 01:07:06,240 AS A Ph.D. SCIENTIST NOT 1918 01:07:06,240 --> 01:07:08,320 REALLY BEING ON THE FRONT LINES 1919 01:07:08,320 --> 01:07:09,400 ENGAGED WITH PARTICIPANTS IN THE 1920 01:07:09,400 --> 01:07:12,000 WORK THAT WE DO ON THE 1921 01:07:12,000 --> 01:07:12,960 DAY-TO-DAY BASIS. 1922 01:07:12,960 --> 01:07:15,200 AND SO THIS IS REALLY SOMETHING 1923 01:07:15,200 --> 01:07:19,920 THAT HAS EVOLVED FOR ME OVER 1924 01:07:19,920 --> 01:07:21,440 TIME AS A RESEARCHER, TO MAKE 1925 01:07:21,440 --> 01:07:23,880 SURE I'M HEARING FROM 1926 01:07:23,880 --> 01:07:25,080 PARTICIPANTS AND UNDERSTANDING 1927 01:07:25,080 --> 01:07:26,280 THEIR PERSPECTIVES AND HOW THAT 1928 01:07:26,280 --> 01:07:30,000 IMPACTS THE WORK THAT WE'RE 1929 01:07:30,000 --> 01:07:30,400 DOING. 1930 01:07:30,400 --> 01:07:32,320 AND SO IT'S REALLY BEEN VERY 1931 01:07:32,320 --> 01:07:35,840 EXCITING FOR ME, AND I JUST LOVE 1932 01:07:35,840 --> 01:07:37,400 HEARING THE STORIES AND 1933 01:07:37,400 --> 01:07:38,160 PERSPECTIVES FROM THE 1934 01:07:38,160 --> 01:07:40,280 PARTICIPANTS AS WE'RE GOING 1935 01:07:40,280 --> 01:07:42,000 ABOUT OUR RESEARCH STUDIES. 1936 01:07:42,000 --> 01:07:45,400 AND REALLY BEING ABLE TO TAKE 1937 01:07:45,400 --> 01:07:46,240 THAT PERSPECTIVE INTO 1938 01:07:46,240 --> 01:07:47,960 CONSIDERATION. 1939 01:07:47,960 --> 01:07:48,840 SO THE NEXT SLIDE. 1940 01:07:48,840 --> 01:07:50,880 I'M GOING TO GO THROUGH A FEW 1941 01:07:50,880 --> 01:07:53,240 EXAMPLES OF HOW WE HAVE 1942 01:07:53,240 --> 01:07:53,880 INCORPORATED PARTICIPANTS INTO 1943 01:07:53,880 --> 01:07:57,240 SOME OF THE WORK THAT WE'RE 1944 01:07:57,240 --> 01:07:58,000 DOING IN DCCPS. 1945 01:07:58,000 --> 01:08:01,160 SO THIS IS AN EXAMPLE FROM 2020 1946 01:08:01,160 --> 01:08:03,880 TO 2021. 1947 01:08:03,880 --> 01:08:12,000 WE ACTUALLY FUNDED 23 CANCER 1948 01:08:12,000 --> 01:08:12,960 SUPPLEMENTS, EXAMPLES OF THE 1949 01:08:12,960 --> 01:08:15,360 PROJECTS AND KINDS OF WORK THAT 1950 01:08:15,360 --> 01:08:16,560 WERE DONE THROUGH THOSE 1951 01:08:16,560 --> 01:08:16,960 SUPPLEMENTS. 1952 01:08:16,960 --> 01:08:25,080 SO THE FIRST ONE IS AN ACADEMIC 1953 01:08:25,080 --> 01:08:26,480 COMMUNITY PARTNERSHIP, BASIC 1954 01:08:26,480 --> 01:08:27,000 SCIENCE RESEARCHERS. 1955 01:08:27,000 --> 01:08:28,520 IN ORDER TO ADVANCE RESEARCH 1956 01:08:28,520 --> 01:08:31,360 THAT WAS RELATED TO THE 1957 01:08:31,360 --> 01:08:33,520 METABOLIC PATHWAY OF HPV-RELATED 1958 01:08:33,520 --> 01:08:34,240 CANCERS. 1959 01:08:34,240 --> 01:08:36,760 AND THEN THE SECOND PROGRAM, 1960 01:08:36,760 --> 01:08:38,480 THEY DEVELOPED A CITIZEN 1961 01:08:38,480 --> 01:08:39,600 SCIENTIST BRIGADE. 1962 01:08:39,600 --> 01:08:43,720 THAT DID ROTATIONS WITH THEIR 1963 01:08:43,720 --> 01:08:46,360 BASIC SCIENCE RESEARCH TEAMS. 1964 01:08:46,360 --> 01:08:47,960 IN ANOTHER PROGRAM COLLABORATED 1965 01:08:47,960 --> 01:08:56,560 WITH COMMUNITY PARTNER TO TRAIN 1966 01:08:56,560 --> 01:08:58,200 IN LOW INCOME LATINX 1967 01:08:58,200 --> 01:08:59,160 COMMUNITIES. 1968 01:08:59,160 --> 01:09:02,440 AND THE FINAL EXAMPLE IS SERIES 1969 01:09:02,440 --> 01:09:18,200 OF DEPARTMENT -- DELIBERATION 1970 01:09:18,200 --> 01:09:18,400 EVENTS. 1971 01:09:18,400 --> 01:09:20,160 FOR AMERICAN INDIANS AND ALASKA 1972 01:09:20,160 --> 01:09:20,600 NATIVES. 1973 01:09:20,600 --> 01:09:27,720 THIS IS AN EXAMPLE OF ONE OF THE 1974 01:09:27,720 --> 01:09:30,320 CONSORTIA IN DCCPS, IMPACT, 1975 01:09:30,320 --> 01:09:31,400 FOCUSING ON IMPROVING MANAGEMENT 1976 01:09:31,400 --> 01:09:31,720 OF SYMPTOMS. 1977 01:09:31,720 --> 01:09:36,040 WE WANTED TO BE ABLE TO COLLECT 1978 01:09:36,040 --> 01:09:37,320 PATIENT-REPORTED OUTCOMES AND 1979 01:09:37,320 --> 01:09:38,800 MEASURES IN TERMS OF HOW THEIR 1980 01:09:38,800 --> 01:09:40,520 TREATMENT WAS IMPACTING THEM. 1981 01:09:40,520 --> 01:09:44,840 AND FIGURING OUT WAYS HOW TO 1982 01:09:44,840 --> 01:09:46,080 BETTER INCORPORATE THIS INTO 1983 01:09:46,080 --> 01:09:48,600 ROUTINE COLLECTION. 1984 01:09:48,600 --> 01:09:50,920 AND SO REALLY EMBEDDING THE 1985 01:09:50,920 --> 01:09:52,200 PARTNERS INTO THE RESEARCH 1986 01:09:52,200 --> 01:09:54,080 CONSORTIUM HAVING THEM BE PART 1987 01:09:54,080 --> 01:09:55,720 OF THE STEERING COMMITTEE, 1988 01:09:55,720 --> 01:09:57,880 HAVING THEM BE PART OF THE 1989 01:09:57,880 --> 01:09:59,400 MEETINGS AND THE WORKING GROUPS 1990 01:09:59,400 --> 01:10:02,920 IN ORDER TO PROVIDE FEEDBACK ON 1991 01:10:02,920 --> 01:10:05,960 HOW THESE RESEARCH STUDIES WERE 1992 01:10:05,960 --> 01:10:06,400 ACTUALLY IMPLEMENTED. 1993 01:10:06,400 --> 01:10:10,600 AND THEN AT THE ANNUAL MEETING, 1994 01:10:10,600 --> 01:10:12,440 HAVING A PATIENT-FOCUSED PANEL 1995 01:10:12,440 --> 01:10:14,960 THAT WAS MODERATED BY THESE 1996 01:10:14,960 --> 01:10:16,600 CONSORTIA REPRESENTATIVES. 1997 01:10:16,600 --> 01:10:19,000 SO REALLY EMBEDDING THE PATIENT, 1998 01:10:19,000 --> 01:10:24,520 SORRY, THE PARTICIPANTS INTO THE 1999 01:10:24,520 --> 01:10:24,800 CONSORTIUM. 2000 01:10:24,800 --> 01:10:26,080 NEXT SLIDE. 2001 01:10:26,080 --> 01:10:27,880 THIRD EXAMPLE IS FUNDED THROUGH 2002 01:10:27,880 --> 01:10:30,160 THE CANCER MOONSHOT. 2003 01:10:30,160 --> 01:10:37,280 THIS IS THE PE-CGS NETWORK. 2004 01:10:37,280 --> 01:10:39,960 ONE OF THE MEMBERS OF THIS 2005 01:10:39,960 --> 01:10:48,640 COMMITTEE IS SERVING AS ONE OF 2006 01:10:48,640 --> 01:10:49,360 THE PARTICIPANTS. 2007 01:10:49,360 --> 01:10:52,920 I WAS ABLE TO ATTEND A MEETING 2008 01:10:52,920 --> 01:10:53,680 LAST FALL. 2009 01:10:53,680 --> 01:10:55,760 HAVING THESE INDIVIDUALS AS PART 2010 01:10:55,760 --> 01:10:58,200 OF THAT MEETING SHARING THEIR 2011 01:10:58,200 --> 01:11:00,720 STORIES AND REALLY HELPING US TO 2012 01:11:00,720 --> 01:11:04,480 SHAPE HOW THE RESEARCH IS 2013 01:11:04,480 --> 01:11:05,560 CONDUCTED WAS INCREDIBLY 2014 01:11:05,560 --> 01:11:06,080 POWERFUL. 2015 01:11:06,080 --> 01:11:08,240 IT JUST WAS REALLY AMAZING TO 2016 01:11:08,240 --> 01:11:17,560 HEAR FROM MAVE, COLLEGE STUDENT 2017 01:11:17,560 --> 01:11:18,800 AND CHILDHOOD CANCER SURVIVOR, 2018 01:11:18,800 --> 01:11:21,120 AND MELINDA, SHE AND HER FAMILY 2019 01:11:21,120 --> 01:11:23,880 WERE IMPACTED FROM CANCER 2020 01:11:23,880 --> 01:11:25,800 DIAGNOSIS, AND LIZ WANTED TO 2021 01:11:25,800 --> 01:11:27,200 TRANSFORM HER QUESTIONS ABOUT 2022 01:11:27,200 --> 01:11:29,240 HOW CAN I UNDERSTAND WHAT'S 2023 01:11:29,240 --> 01:11:32,000 HAPPENING TO ME TO HELP OTHER 2024 01:11:32,000 --> 01:11:33,800 PEOPLE TO UNDERSTAND HOW CAN 2025 01:11:33,800 --> 01:11:36,000 THEY UNDERSTAND WHAT'S HAPPENING 2026 01:11:36,000 --> 01:11:39,160 TO THEM AND BE BETTER INFORMED. 2027 01:11:39,160 --> 01:11:41,160 IT WAS JUST REALLY INCREDIBLE 2028 01:11:41,160 --> 01:11:43,360 MEETING TO HAVE THESE 2029 01:11:43,360 --> 01:11:51,880 PARTICIPANTS AS PART OF THE 2030 01:11:51,880 --> 01:11:52,920 CONFERENCE. 2031 01:11:52,920 --> 01:11:53,280 NEXT SLIDE. 2032 01:11:53,280 --> 01:11:56,120 I WANT TO SPEAK WITH OUR EFFORTS 2033 01:11:56,120 --> 01:11:58,080 ON HEALTH DISPARITIES AND HEALTH 2034 01:11:58,080 --> 01:11:59,080 EQUITIES. 2035 01:11:59,080 --> 01:12:03,280 NEXT SLIDE. 2036 01:12:03,280 --> 01:12:06,560 DCCPS APPROACH HAS BEEN DATA 2037 01:12:06,560 --> 01:12:07,200 DRIVEN. 2038 01:12:07,200 --> 01:12:10,960 I THINK THE EXAMPLE THAT NED 2039 01:12:10,960 --> 01:12:14,160 SHOWED OF THE GEOGRAPHICAL 2040 01:12:14,160 --> 01:12:17,920 SLIDES AND SHOWING HOW THERE 2041 01:12:17,920 --> 01:12:18,760 IS -- THERE ARE DIFFERENCES 2042 01:12:18,760 --> 01:12:20,160 ACROSS GEOGRAPHY IN THE UNITED 2043 01:12:20,160 --> 01:12:21,560 STATES IS ONE EXAMPLE HOW WE CAN 2044 01:12:21,560 --> 01:12:23,200 USE DATA TO REALLY TRY TO HONE 2045 01:12:23,200 --> 01:12:26,480 IN ON AREAS WHERE WE NEED TO 2046 01:12:26,480 --> 01:12:26,960 FOCUS. 2047 01:12:26,960 --> 01:12:30,200 AND SOME OF THE EXAMPLE FOCUS 2048 01:12:30,200 --> 01:12:31,400 AREAS OVER THE PAST SEVERAL 2049 01:12:31,400 --> 01:12:37,400 YEARS WHERE WE'VE BEEN FOCUSING, 2050 01:12:37,400 --> 01:12:39,760 SOMEONE IN OUR OFFICE HAS DONE A 2051 01:12:39,760 --> 01:12:41,520 LOT OF WORK ESTABLISHING 2052 01:12:41,520 --> 01:12:42,680 RELATIONSHIPS WITH COMMUNITY 2053 01:12:42,680 --> 01:12:45,040 ORGANIZATIONS, WITH THE AMERICAN 2054 01:12:45,040 --> 01:12:47,440 INDIAN AND ALASKA NATIVE 2055 01:12:47,440 --> 01:12:51,000 POPULATIONS, AS WELL AS DOING 2056 01:12:51,000 --> 01:12:53,240 TRAINING IN ORDER TO HELP 2057 01:12:53,240 --> 01:12:55,960 INDIVIDUALS IN THESE COMMUNITIES 2058 01:12:55,960 --> 01:12:57,280 JOIN THE SCIENTIFIC WORKFORCE 2059 01:12:57,280 --> 01:13:01,440 AND BE ABLE TO BE SUCCESSFUL IN 2060 01:13:01,440 --> 01:13:03,480 WRITING GRANT APPLICATIONS. 2061 01:13:03,480 --> 01:13:06,200 LAST FALL WE ALSO HELD A 2062 01:13:06,200 --> 01:13:07,800 WORKSHOP ON CANCER EPIDEMIOLOGY 2063 01:13:07,800 --> 01:13:10,720 AND HISPANIC POPULATIONS, AND 2064 01:13:10,720 --> 01:13:11,760 THIS WAS REALLY AN OPPORTUNITY 2065 01:13:11,760 --> 01:13:15,000 FOR OUR STAFF TO HEAR FROM THE 2066 01:13:15,000 --> 01:13:16,440 COMMUNITY IN TERMS OF WHAT ARE 2067 01:13:16,440 --> 01:13:18,200 THE CHALLENGES THEY ARE 2068 01:13:18,200 --> 01:13:19,960 EXPERIENCING, AND DOING RESEARCH 2069 01:13:19,960 --> 01:13:21,200 WITH THIS POPULATION, WHAT DO 2070 01:13:21,200 --> 01:13:23,520 THEY THINK THE GAPS ARE, WHAT DO 2071 01:13:23,520 --> 01:13:24,560 THEY THINK THE PRIORITIES ARE 2072 01:13:24,560 --> 01:13:26,400 THAT WE SHOULD BE FOCUSING ON. 2073 01:13:26,400 --> 01:13:30,600 AND THIS KIND OF WORKSHOP REALLY 2074 01:13:30,600 --> 01:13:32,400 HELPED NCI TO THINK ABOUT HOW WE 2075 01:13:32,400 --> 01:13:34,600 WANT TO MOVE FORWARD WITH OUR 2076 01:13:34,600 --> 01:13:37,520 PRIORITIES IN THE FUTURE. 2077 01:13:37,520 --> 01:13:39,600 SO, WE'RE CURRENTLY WORKING ON 2078 01:13:39,600 --> 01:13:42,680 SUMMARIZING THE WORK THAT WAS 2079 01:13:42,680 --> 01:13:44,520 PRESENTED AT THAT WORKSHOP. 2080 01:13:44,520 --> 01:13:47,480 AS NED MENTIONED WE HAD A RURAL 2081 01:13:47,480 --> 01:13:49,000 CANCER CONTROL PROGRAM FOR 2082 01:13:49,000 --> 01:13:50,520 SEVERAL YEARS, AND I'LL SHOW AN 2083 01:13:50,520 --> 01:13:52,200 EXAMPLE IN A MINUTE OF SOME OF 2084 01:13:52,200 --> 01:13:54,640 THE STEPS THAT WE'VE GONE 2085 01:13:54,640 --> 01:13:59,080 THROUGH TO PROMOTE THAT AGENDA. 2086 01:13:59,080 --> 01:14:00,400 WE'RE EMENDER DATA COLLECTION 2087 01:14:00,400 --> 01:14:02,480 FROM SEXUAL AND GENDER MINORITY 2088 01:14:02,480 --> 01:14:03,440 POPULATIONS RIGHT NOW. 2089 01:14:03,440 --> 01:14:08,400 THIS IS A GAP THAT REALLY MAKES 2090 01:14:08,400 --> 01:14:10,240 IT CHALLENGING TO EFFECTIVELY 2091 01:14:10,240 --> 01:14:11,680 CONDUCT WORK WITH THESE 2092 01:14:11,680 --> 01:14:14,520 POPULATIONS, SO THIS IS A NEED 2093 01:14:14,520 --> 01:14:16,480 THAT WE REALLY NEED TO FIGURE 2094 01:14:16,480 --> 01:14:22,400 OUT AS A RESEARCH COMMUNITY HOW 2095 01:14:22,400 --> 01:14:24,720 WE'RE GOING TO ADDRESS THIS. 2096 01:14:24,720 --> 01:14:26,080 FINALLY FOCUSING ON DEVELOPMENT 2097 01:14:26,080 --> 01:14:28,040 OF NEW RESEARCH COHORTS THAT 2098 01:14:28,040 --> 01:14:31,920 REALLY ARE FOCUSING ON 2099 01:14:31,920 --> 01:14:32,880 UNDERSTUDIED POPULATIONS. 2100 01:14:32,880 --> 01:14:37,440 IN THE PAST WE'VE HAD LESS 2101 01:14:37,440 --> 01:14:38,560 PARTICIPATION FROM CERTAIN 2102 01:14:38,560 --> 01:14:39,600 POPULATION GROUPS IN RESEARCH, 2103 01:14:39,600 --> 01:14:42,800 AND WE REALLY WANT TO HAVE 2104 01:14:42,800 --> 01:14:44,760 FUNDING OPPORTUNITIES THAT HELP 2105 01:14:44,760 --> 01:14:50,160 TO ADDRESS THOSE GAPS. 2106 01:14:50,160 --> 01:14:50,800 NEXT SLIDE. 2107 01:14:50,800 --> 01:14:54,640 SO THIS IS JUST SHOWING 2108 01:14:54,640 --> 01:14:57,000 TRAJECTORY OVER THE PAST 20 OR 2109 01:14:57,000 --> 01:15:00,760 SO YEARS, AND REALLY A CREDIT TO 2110 01:15:00,760 --> 01:15:02,200 MY PREDECESSOR, BOB CROYLE, IN 2111 01:15:02,200 --> 01:15:05,600 TERMS OF PRIORITIZING RESEARCH 2112 01:15:05,600 --> 01:15:06,680 ON HEALTH DISPARITIES. 2113 01:15:06,680 --> 01:15:09,400 AND I THINK THE DIVISION HAS 2114 01:15:09,400 --> 01:15:11,720 REALLY MADE AN INCREDIBLE EFFORT 2115 01:15:11,720 --> 01:15:15,120 TO FOCUS THE RESEARCH AND THE 2116 01:15:15,120 --> 01:15:17,000 RESEARCH COMMUNITY ON QUESTIONS 2117 01:15:17,000 --> 01:15:18,040 AROUND HEALTH DISPARITIES, AND 2118 01:15:18,040 --> 01:15:24,200 SO AS OF LAST YEAR OUR PORTFOLIO 2119 01:15:24,200 --> 01:15:26,600 INCLUDED 76% THAT HAD SOME FOCUS 2120 01:15:26,600 --> 01:15:30,600 IN THEIR SPECIFIC AIM ON HEALTH 2121 01:15:30,600 --> 01:15:34,520 DISPARITY QUESTIONS, OR 2122 01:15:34,520 --> 01:15:36,280 UNDERSTUDIED POPULATIONS, OR 2123 01:15:36,280 --> 01:15:37,280 BOTH. 2124 01:15:37,280 --> 01:15:38,440 NEXT SLIDE. 2125 01:15:38,440 --> 01:15:42,880 AND THIS IS AN EXAMPLE OF HOW 2126 01:15:42,880 --> 01:15:45,000 DCCPS REALLY WORKS TO DEVELOP 2127 01:15:45,000 --> 01:15:48,120 FOCUS IN ONE OF THESE AREAS. 2128 01:15:48,120 --> 01:15:52,160 SO IN TERMS OF RURAL AGENDA, AND 2129 01:15:52,160 --> 01:15:53,920 ALSO THINKING ABOUT PERSISTENTLY 2130 01:15:53,920 --> 01:15:55,800 POOR COMMUNITIES, WHAT ARE THE 2131 01:15:55,800 --> 01:15:58,480 STEPS THAT WE NEED TO GO THROUGH 2132 01:15:58,480 --> 01:16:02,240 IN ORDER TO HELP BUILD THE 2133 01:16:02,240 --> 01:16:04,280 RESEARCH COMMUNITY THAT COULD 2134 01:16:04,280 --> 01:16:06,320 ACTUALLY CONDUCT THE RESEARCH IN 2135 01:16:06,320 --> 01:16:07,200 THESE AREAS. 2136 01:16:07,200 --> 01:16:08,920 SO ONE OF THE FIRST THINGS THAT 2137 01:16:08,920 --> 01:16:11,880 WE START OFF WITH IS TRYING TO 2138 01:16:11,880 --> 01:16:14,960 HELP RESEARCHERS TO BUILD 2139 01:16:14,960 --> 01:16:16,360 PARTNERSHIPS WITH ORGANIZATIONS 2140 01:16:16,360 --> 01:16:17,760 AND COMMUNITIES THAT ARE IN 2141 01:16:17,760 --> 01:16:19,520 THOSE AREAS. 2142 01:16:19,520 --> 01:16:22,080 THAT'S JUST SOMETHING THAT'S 2143 01:16:22,080 --> 01:16:23,120 FOUNDATIONAL AND NECESSARY IN 2144 01:16:23,120 --> 01:16:24,680 ORDER TO SUCCESSFULLY CONDUCT 2145 01:16:24,680 --> 01:16:26,480 WORK IN THOSE AREAS. 2146 01:16:26,480 --> 01:16:27,960 WE ALSO CONVENED MEETINGS LIKE 2147 01:16:27,960 --> 01:16:30,320 THE HISPANIC MEETING I MENTIONED 2148 01:16:30,320 --> 01:16:34,200 WHERE WE BRING TOGETHER EXPERTS 2149 01:16:34,200 --> 01:16:35,320 AND OTHER COMMUNITY SPEAKERS WHO 2150 01:16:35,320 --> 01:16:37,360 CAN HELP US TO UNDERSTAND WHAT 2151 01:16:37,360 --> 01:16:41,200 THE GAPS ARE AND WHAT RESEARCH 2152 01:16:41,200 --> 01:16:42,200 IS NEEDED. 2153 01:16:42,200 --> 01:16:47,640 WE MOVED TO SUPPLEMENT 2154 01:16:47,640 --> 01:16:49,960 OPPORTUNITIES, MAYBE SMALLER 2155 01:16:49,960 --> 01:16:53,120 GRANT OPPORTUNITIES TO HELP 2156 01:16:53,120 --> 01:16:55,520 PEOPLE GET STARTED, GET SOME 2157 01:16:55,520 --> 01:16:57,360 DATA, GET SOME WORK GOING IN 2158 01:16:57,360 --> 01:17:01,200 THAT AREA. 2159 01:17:01,200 --> 01:17:05,640 AND THEN FINALLY HAVING RESEARCH 2160 01:17:05,640 --> 01:17:06,280 PROJECT OPPORTUNITIES WHICH ARE 2161 01:17:06,280 --> 01:17:07,360 MUCH LARGER OPPORTUNITIES BUT 2162 01:17:07,360 --> 01:17:08,680 NEED ALL OF THIS INFRASTRUCTURE 2163 01:17:08,680 --> 01:17:11,360 IN PLACE IN ORDER TO BE 2164 01:17:11,360 --> 01:17:11,640 SUCCESSFUL. 2165 01:17:11,640 --> 01:17:15,120 I JUST POSTED IN THE CHAT A FEW 2166 01:17:15,120 --> 01:17:18,360 MINUTES AGO A LINK FOR OUR 2167 01:17:18,360 --> 01:17:19,800 PERSISTENT POVERTY RFA THAT WAS 2168 01:17:19,800 --> 01:17:22,760 JUST POSTED YESTERDAY. 2169 01:17:22,760 --> 01:17:25,320 THAT'S REALLY THE CULMINATION OF 2170 01:17:25,320 --> 01:17:30,200 SEVERAL YEARS OF WORK. 2171 01:17:30,200 --> 01:17:30,760 NEXT SLIDE. 2172 01:17:30,760 --> 01:17:33,360 I'LL SPEAK A LITTLE ABOUT THE 2173 01:17:33,360 --> 01:17:36,200 CANCER SURVEILLANCE WORK. 2174 01:17:36,200 --> 01:17:39,960 NEXT SLIDE. 2175 01:17:39,960 --> 01:17:41,960 OVER THE PAST YEAR WE'RE EXCITED 2176 01:17:41,960 --> 01:17:43,600 ABOUT THE SEER EXPANSION, AND 2177 01:17:43,600 --> 01:17:46,840 THIS HAS BEEN A TREMENDOUS 2178 01:17:46,840 --> 01:17:48,600 EFFORT TO INCREASE THE COVERAGE 2179 01:17:48,600 --> 01:17:50,600 OF THE SEER PROGRAM FROM ABOUT A 2180 01:17:50,600 --> 01:17:54,080 THIRD OF THE U.S. POPULATION TO 2181 01:17:54,080 --> 01:17:55,600 NOW COVERING ALMOST HALF OF THE 2182 01:17:55,600 --> 01:17:59,840 U.S. POPULATION AS PART OF THIS 2183 01:17:59,840 --> 01:18:00,080 PROGRAM. 2184 01:18:00,080 --> 01:18:03,360 AND THIS WAS REALLY NECESSARY TO 2185 01:18:03,360 --> 01:18:06,760 ALLOW US TO START LOOKING AT 2186 01:18:06,760 --> 01:18:10,680 SUBSETS OF CANCER CASES WITHIN 2187 01:18:10,680 --> 01:18:11,960 OUR SURVEILLANCE MECHANISMS SO 2188 01:18:11,960 --> 01:18:13,720 WE CAN REALLY UNDERSTAND WHAT'S 2189 01:18:13,720 --> 01:18:16,800 HAPPENING WITHIN THOSE SUBSETS. 2190 01:18:16,800 --> 01:18:20,880 SO THAT MIGHT INCLUDE 2191 01:18:20,880 --> 01:18:21,760 HISTOLOGICAL SUBTYPE, 2192 01:18:21,760 --> 01:18:23,920 BIOMARKERS, DIFFERENT TREATMENT 2193 01:18:23,920 --> 01:18:27,640 CATEGORIES, BUT ALSO INCLUDES 2194 01:18:27,640 --> 01:18:29,720 IMPORTANT POPULATION SUBGROUPS. 2195 01:18:29,720 --> 01:18:30,400 NEXT SLIDE. 2196 01:18:30,400 --> 01:18:34,040 AS OF JUNE OF LAST YEAR, THIS IS 2197 01:18:34,040 --> 01:18:35,800 THE MAP OF THE STATES NOW 2198 01:18:35,800 --> 01:18:38,200 INCLUDED AS PART OF THE SEER 2199 01:18:38,200 --> 01:18:38,440 PROGRAM. 2200 01:18:38,440 --> 01:18:39,960 TEXAS AND ILLINOIS WERE TWO OF 2201 01:18:39,960 --> 01:18:45,000 THE STATES THAT WERE RECENTLY 2202 01:18:45,000 --> 01:18:46,240 ADDED THAT REALLY MADE SOME OF 2203 01:18:46,240 --> 01:18:50,240 THE LARGEST DIFFERENCE IN THE 2204 01:18:50,240 --> 01:18:51,080 SEER PROGRAM. 2205 01:18:51,080 --> 01:18:52,120 NEXT SLIDE. 2206 01:18:52,120 --> 01:18:54,760 THIS IS SHOWING HOW THIS 2207 01:18:54,760 --> 01:18:56,720 EXPANSION HAS REALLY IMPACTED 2208 01:18:56,720 --> 01:18:59,840 REPRESENTATION WITHIN SEER. 2209 01:18:59,840 --> 01:19:02,200 SO, ALTHOUGH WE'RE AT NEARLY 50% 2210 01:19:02,200 --> 01:19:03,440 OF THE POPULATION OVERALL, THERE 2211 01:19:03,440 --> 01:19:06,080 ARE CERTAIN SUBGROUPS WHERE 2212 01:19:06,080 --> 01:19:11,960 WE'RE REALLY CAPTURING HIGHER 2213 01:19:11,960 --> 01:19:12,880 PERCENTAGE OF THE POPULATION. 2214 01:19:12,880 --> 01:19:14,680 FOR INSTANCE HISPANIC FROM 45% 2215 01:19:14,680 --> 01:19:19,840 OF CANCER CASES UP TO 69% OF 2216 01:19:19,840 --> 01:19:22,920 CANCER CASES ARE NOW CAPTURED IN 2217 01:19:22,920 --> 01:19:24,600 THE SEER REGISTRY, SO THAT'S 2218 01:19:24,600 --> 01:19:26,560 GOING TO GIVE A MUCH STRONGER 2219 01:19:26,560 --> 01:19:31,520 ABILITY TO LOOK AT 2220 01:19:31,520 --> 01:19:35,200 SUBPOPULATIONS WITHIN HISPANIC 2221 01:19:35,200 --> 01:19:35,640 POPULATION. 2222 01:19:35,640 --> 01:19:37,320 NEXT SLIDE. 2223 01:19:37,320 --> 01:19:39,600 MODIFIABLE RISK FACTORS, THIS IS 2224 01:19:39,600 --> 01:19:43,080 PART OF OUR BEHAVIORAL RESEARCH 2225 01:19:43,080 --> 01:19:44,920 BRANCH. 2226 01:19:44,920 --> 01:19:45,200 NEXT SLIDE. 2227 01:19:45,200 --> 01:19:47,000 SO TOBACCO CESSATION HAS BEEN A 2228 01:19:47,000 --> 01:19:49,400 FOCUS OF THE DIVISION FOR MANY 2229 01:19:49,400 --> 01:19:51,800 YEARS, AND ONE AREA WHERE WE 2230 01:19:51,800 --> 01:19:54,560 REALLY WANT TO FOCUS GOING 2231 01:19:54,560 --> 01:19:57,520 FORWARD IS ON ADOLESCENT TOBACCO 2232 01:19:57,520 --> 01:19:58,520 CESSATION. 2233 01:19:58,520 --> 01:20:00,920 THERE'S BEEN INCREDIBLE SUCCESS 2234 01:20:00,920 --> 01:20:02,120 AROUND TOBACCO CESSATION OVERALL 2235 01:20:02,120 --> 01:20:05,240 IN THE UNITED STATES. 2236 01:20:05,240 --> 01:20:08,000 BUT UNFORTUNATELY, WE'RE STILL 2237 01:20:08,000 --> 01:20:10,280 SEEING A PERSISTENT AND 2238 01:20:10,280 --> 01:20:11,720 UNACCEPTABLY HIGH USE AMONG 2239 01:20:11,720 --> 01:20:12,040 ADOLESCENTS. 2240 01:20:12,040 --> 01:20:14,880 THIS IS THE TIME FRAME WHEN MOST 2241 01:20:14,880 --> 01:20:17,200 PEOPLE WHO ARE GOING TO SMOKE 2242 01:20:17,200 --> 01:20:19,480 WILL ACTUALLY BEGIN SMOKING. 2243 01:20:19,480 --> 01:20:24,040 AND SO IT'S REALLY A CRITICAL 2244 01:20:24,040 --> 01:20:25,760 TIME FOR INTERVENTIONS. 2245 01:20:25,760 --> 01:20:28,120 66% OF ADOLESCENTS WHO CURRENTLY 2246 01:20:28,120 --> 01:20:29,600 USE TOBACCO PRODUCTS REPORT 2247 01:20:29,600 --> 01:20:32,680 WANTING TO QUIT OR HAVING 2248 01:20:32,680 --> 01:20:34,840 ATTEMPTED TO QUIT BUT THOSE 2249 01:20:34,840 --> 01:20:37,000 TOBACCO CESSATION PROGRAMS WE'VE 2250 01:20:37,000 --> 01:20:39,200 DEVELOPED IN ADULTS DON'T 2251 01:20:39,200 --> 01:20:40,200 NECESSARILY TRANSLATE WELL TO 2252 01:20:40,200 --> 01:20:42,360 THIS AGE GROUP. 2253 01:20:42,360 --> 01:20:43,920 AND SO THIS IS A MAJOR HEALTH 2254 01:20:43,920 --> 01:20:45,680 PROBLEM WE WOULD REALLY LIKE TO 2255 01:20:45,680 --> 01:20:49,760 FOCUS ATTENTION ON. 2256 01:20:49,760 --> 01:20:50,680 NEXT SLIDE. 2257 01:20:50,680 --> 01:20:52,800 THIS IS LOOKING AT CURRENT 2258 01:20:52,800 --> 01:20:54,400 TOBACCO USE FROM 2020. 2259 01:20:54,400 --> 01:20:58,760 SO IN THE PAST 30 DAYS, ALMOST 2260 01:20:58,760 --> 01:21:00,840 25% OF HIGH SCHOOL STUDENTS EWES 2261 01:21:00,840 --> 01:21:02,160 USED SOME KIND OF TOBACCO 2262 01:21:02,160 --> 01:21:06,960 PRODUCT, MOST OF THIS IS THE 2263 01:21:06,960 --> 01:21:08,720 ELECTRONIC NICOTINE DELIVERY 2264 01:21:08,720 --> 01:21:10,480 SYSTEMS, e-CIGARETTES. 2265 01:21:10,480 --> 01:21:13,120 AND SO I THINK IN TERMS OF 2266 01:21:13,120 --> 01:21:14,280 ADDRESSING THIS POPULATION WE 2267 01:21:14,280 --> 01:21:18,000 ALSO NEED TO THINK ABOUT WHAT 2268 01:21:18,000 --> 01:21:19,320 KINDS OF PRODUCTS IN VARIATION 2269 01:21:19,320 --> 01:21:31,280 AND KINDS OF PRODUCTS THEY ARE 2270 01:21:31,280 --> 01:21:31,480 USING. 2271 01:21:31,480 --> 01:21:33,200 WE HAVE MANY PERHAPS ON EXERCISE 2272 01:21:33,200 --> 01:21:34,280 AND NUTRITION, THIS IS ONE 2273 01:21:34,280 --> 01:21:37,360 EXAMPLE OF A NEW PROGRAM THAT IS 2274 01:21:37,360 --> 01:21:38,680 GOING TO BE ANNOUNCED IN APRIL 2275 01:21:38,680 --> 01:21:40,120 VERY SOON, THAT WE'RE EXCITED 2276 01:21:40,120 --> 01:21:42,480 ABOUT. 2277 01:21:42,480 --> 01:21:45,040 AND THIS IS FOCUSING 2278 01:21:45,040 --> 01:21:48,120 SPECIFICALLY ON 2279 01:21:48,120 --> 01:21:48,800 TREATMENT-RELATED OUTCOMES AND 2280 01:21:48,800 --> 01:21:50,080 INTERVENING AT THE POINT IN TIME 2281 01:21:50,080 --> 01:21:51,840 EITHER RIGHT BEFORE THE PATIENT 2282 01:21:51,840 --> 01:21:55,000 STARTS TREATMENT OR DURING 2283 01:21:55,000 --> 01:21:55,720 TREATMENT. 2284 01:21:55,720 --> 01:21:58,360 THIS IS NOT A WELL-STUDIED POINT 2285 01:21:58,360 --> 01:22:01,080 IN TIME BUT WE THINK THERE'S A 2286 01:22:01,080 --> 01:22:03,200 REALLY GOOD OPPORTUNITY IN THIS 2287 01:22:03,200 --> 01:22:07,040 TIME FRAME, IF WE ARE ABLE TO 2288 01:22:07,040 --> 01:22:09,000 INTERVENE AND MAKE IMPROVEMENTS 2289 01:22:09,000 --> 01:22:12,200 IN FITNESS AND DIET TO IMPROVE 2290 01:22:12,200 --> 01:22:13,480 TREATMENT OUTCOMES FOR CANCER 2291 01:22:13,480 --> 01:22:13,800 SURVIVORS. 2292 01:22:13,800 --> 01:22:16,800 SO I THINK WE'RE REALLY EXCITED 2293 01:22:16,800 --> 01:22:19,760 TO SEE WHAT HAPPENS WITH THESE 2294 01:22:19,760 --> 01:22:21,040 PROJECTS, ONCE THEY ARE 2295 01:22:21,040 --> 01:22:27,520 ANNOUNCED, AND BEGIN NEXT MONTH. 2296 01:22:27,520 --> 01:22:29,600 NEXT SLIDE. 2297 01:22:29,600 --> 01:22:31,640 OF COURSE, THESE BEHAVIORAL RISK 2298 01:22:31,640 --> 01:22:34,800 FACTORS OR MODIFIABLE RISK 2299 01:22:34,800 --> 01:22:36,760 FACTORS NOT ONLY IMPACT CANCER 2300 01:22:36,760 --> 01:22:39,920 BUT THIS IS SOMETHING OF 2301 01:22:39,920 --> 01:22:41,800 INTEREST ACROSS MANY IF NOT ALL 2302 01:22:41,800 --> 01:22:44,200 OF THE I.C.s AT NIH. 2303 01:22:44,200 --> 01:22:46,600 AND SO I JUST WANTED TO INCLUDE 2304 01:22:46,600 --> 01:22:49,640 THIS SLIDE TO SAY THAT WE DON'T 2305 01:22:49,640 --> 01:22:52,360 WORK IN ISOLATION. 2306 01:22:52,360 --> 01:22:53,600 WE DEFINITELY COLLABORATE ACROSS 2307 01:22:53,600 --> 01:22:57,520 NIH, AND EVEN HAVE LEADERSHIP 2308 01:22:57,520 --> 01:23:03,800 ROLES AS WE THINK ABOUT HOW TO 2309 01:23:03,800 --> 01:23:06,480 INTERVENE ON NUTRITION AND 2310 01:23:06,480 --> 01:23:07,120 EXERCISE TO IMPROVE OVERALL 2311 01:23:07,120 --> 01:23:07,480 HEALTH. 2312 01:23:07,480 --> 01:23:10,120 SO THIS IS AN EXAMPLE FUNDED 2313 01:23:10,120 --> 01:23:12,240 THROUGH THE COMMON FUND FOR THE 2314 01:23:12,240 --> 01:23:15,640 "ALL OF US" RESEARCH PROGRAM, 2315 01:23:15,640 --> 01:23:18,440 WHERE DCCPS, SCIENTISTS HAVE HAD 2316 01:23:18,440 --> 01:23:19,920 A LEADERSHIP ROLE. 2317 01:23:19,920 --> 01:23:23,440 WE'VE DEVELOPED THE AUTOMATED 2318 01:23:23,440 --> 01:23:25,600 SELF-ADMINISTERED 24-HOUR 2319 01:23:25,600 --> 01:23:26,600 DIETARY ASSESSMENT TOOL, ASA-24, 2320 01:23:26,600 --> 01:23:29,520 THAT'S ACTUALLY GOING TO BE 2321 01:23:29,520 --> 01:23:31,120 IMPLEMENTED IN THIS PROGRAM. 2322 01:23:31,120 --> 01:23:33,880 AND OUR STAFF ARE PROVIDING 2323 01:23:33,880 --> 01:23:35,280 LEADERSHIP AND EXPERTISE AS PART 2324 01:23:35,280 --> 01:23:37,800 OF THE STUDY CENTERS INVOLVED IN 2325 01:23:37,800 --> 01:23:41,400 THIS PROGRAM. 2326 01:23:41,400 --> 01:23:43,000 NEXT SLIDE. 2327 01:23:43,000 --> 01:23:46,120 NED MENTIONED CANCER SCREENING. 2328 01:23:46,120 --> 01:23:47,200 NEXT SLIDE. 2329 01:23:47,200 --> 01:23:50,200 SO AS HE SAID, THE PRESIDENT'S 2330 01:23:50,200 --> 01:23:52,760 CANCER PANEL JUST RELEASED THEIR 2331 01:23:52,760 --> 01:23:55,400 REPORT IN FEBRUARY OF THIS YEAR, 2332 01:23:55,400 --> 01:23:59,360 AND WE WERE REALLY GLAD THAT 2333 01:23:59,360 --> 01:24:01,360 DCCPS STAFF WERE ABLE TO 2334 01:24:01,360 --> 01:24:05,480 CONTRIBUTE AS EXPERTS TO SOME OF 2335 01:24:05,480 --> 01:24:13,320 THE MEETINGS THAT WERE CONDUCTED 2336 01:24:13,320 --> 01:24:15,880 TO ESTABLISH THIS REPORT. 2337 01:24:15,880 --> 01:24:16,560 NEXT SLIGHT. 2338 01:24:16,560 --> 01:24:19,400 THERE'S BEEN -- I WANTED TO GO 2339 01:24:19,400 --> 01:24:23,560 THROUGH SEVERAL EXAMPLES OF 2340 01:24:23,560 --> 01:24:24,520 DCCPS-SUPPORTED SCIENCE. 2341 01:24:24,520 --> 01:24:26,360 ACTUALLY HAD AN IMPACT ON 2342 01:24:26,360 --> 01:24:26,680 GUIDELINES. 2343 01:24:26,680 --> 01:24:31,000 THIS IS AN EXAMPLE IN LUNG 2344 01:24:31,000 --> 01:24:31,360 CANCER SCREENING. 2345 01:24:31,360 --> 01:24:36,280 IN THE FIRST MANUSCRIPT THIS HAS 2346 01:24:36,280 --> 01:24:47,600 CO-AUTHORS FROM STAFF IN OUR 2347 01:24:47,600 --> 01:24:49,240 DIVISION AND SHOWED USPSTF 2348 01:24:49,240 --> 01:24:51,200 SCREENING REMAINED BELOW HEALTHY 2349 01:24:51,200 --> 01:24:52,720 PEOPLE 2020 TARGETS. 2350 01:24:52,720 --> 01:24:57,160 IN ANOTHER PROGRAM, FUNDED 2351 01:24:57,160 --> 01:25:00,000 THROUGH DCCPS, CISNET, DID A 2352 01:25:00,000 --> 01:25:02,480 MODELING STUDY THAT ESTIMATED 2353 01:25:02,480 --> 01:25:03,960 THAT SCREENING INDIVIDUALS AGE 2354 01:25:03,960 --> 01:25:08,000 50 OR 55 THROUGH AGE 80 WITH 20 2355 01:25:08,000 --> 01:25:09,960 PACK YEARS OF SMOKING EXPOSURE 2356 01:25:09,960 --> 01:25:12,800 WOULD RESULT IN MORE BENEFIT 2357 01:25:12,800 --> 01:25:15,680 THAN IN THE 2013 U.S. PREVENTIVE 2358 01:25:15,680 --> 01:25:17,200 SERVICES TASK FORCE 2359 01:25:17,200 --> 01:25:20,480 RECOMMENDATIONS. 2360 01:25:20,480 --> 01:25:21,600 AND THESE FINDINGS ACTUALLY 2361 01:25:21,600 --> 01:25:25,960 INFORMED REVISIONS AND UPDATES 2362 01:25:25,960 --> 01:25:27,680 TO THE USPSTF GUIDELINES 2363 01:25:27,680 --> 01:25:30,640 PUBLISHED IN 2021. 2364 01:25:30,640 --> 01:25:34,440 NEXT SLIDE. 2365 01:25:34,440 --> 01:25:38,480 A COHORT STUDY THEN LOOKED AT 2366 01:25:38,480 --> 01:25:39,800 THOSE 2021 RECOMMENDATIONS AND 2367 01:25:39,800 --> 01:25:42,800 SHOWED THAT IF THEY ARE ADOPTED, 2368 01:25:42,800 --> 01:25:46,600 THIS WILL INCREASE THE NUMBER OF 2369 01:25:46,600 --> 01:25:47,440 WOMEN, RACIAL AND ETHNIC 2370 01:25:47,440 --> 01:25:49,840 MINORITY GROUPS AND INDIVIDUALS 2371 01:25:49,840 --> 01:25:51,360 WITH LOWER SES ELIGIBLE FOR LUNG 2372 01:25:51,360 --> 01:25:53,240 CANCER SCREENING AND HELP TO 2373 01:25:53,240 --> 01:26:01,880 CLOSE THE GAP FOR THOSE GROUPS. 2374 01:26:01,880 --> 01:26:05,360 FINALLY LAST FALL THE CISNET 2375 01:26:05,360 --> 01:26:08,560 GROUP DID SIMULATION SHOWING 2376 01:26:08,560 --> 01:26:11,000 JOINTLY SCREENING AND 2377 01:26:11,000 --> 01:26:12,360 IMPLEMENTING TOBACCO CESSATION 2378 01:26:12,360 --> 01:26:15,880 INTERVENTIONS AT THE SAME TIME 2379 01:26:15,880 --> 01:26:18,760 COULD RESULT IN FEWER LUNG 2380 01:26:18,760 --> 01:26:21,920 CANCER DEATHS AND MORE LIFE YEAR 2381 01:26:21,920 --> 01:26:24,640 GAINS THAN JUST DOING THE 2382 01:26:24,640 --> 01:26:26,800 SCREENING ALONE. 2383 01:26:26,800 --> 01:26:31,640 SO I THINK THAT IS YET SOMETHING 2384 01:26:31,640 --> 01:26:33,720 STILL TO BE EVALUATED 2385 01:26:33,720 --> 01:26:34,720 PROSPECTIVELY GOING FORWARD BUT 2386 01:26:34,720 --> 01:26:38,160 I THINK IT GIVES US SOME CLUES 2387 01:26:38,160 --> 01:26:43,040 ABOUT POTENTIAL AREAS FOR FUTURE 2388 01:26:43,040 --> 01:26:43,240 WORK. 2389 01:26:43,240 --> 01:26:43,560 NEXT SLIDE. 2390 01:26:43,560 --> 01:26:44,800 ALL RIGHT. 2391 01:26:44,800 --> 01:26:50,440 THE ENVIRONMENT AND CANCER, NEXT 2392 01:26:50,440 --> 01:26:50,640 SLIDE. 2393 01:26:50,640 --> 01:26:53,040 SO, THE ENVIRONMENT HAS 2394 01:26:53,040 --> 01:26:54,880 TREMENDOUS IMPACT ON CANCER 2395 01:26:54,880 --> 01:26:55,800 RISK. 2396 01:26:55,800 --> 01:26:58,240 AND IT'S ESTIMATED THAT 12 TO 2397 01:26:58,240 --> 01:27:01,800 29% OF CANCERS ARE ATTRIBUTED TO 2398 01:27:01,800 --> 01:27:03,880 ENVIRONMENTAL EXPOSURES, AND 2399 01:27:03,880 --> 01:27:05,880 THERE ARE OVER 100 AGENTS KNOWN 2400 01:27:05,880 --> 01:27:09,280 TO BE CARCINOGENIC AND OVER 400 2401 01:27:09,280 --> 01:27:10,200 PROBABLY OR POSSIBLY 2402 01:27:10,200 --> 01:27:10,520 CARCINOGENIC. 2403 01:27:10,520 --> 01:27:12,320 ONE THING I'D LIKE TO ADD TO 2404 01:27:12,320 --> 01:27:15,840 THIS SLIDE IS OF THE IMPACT OF 2405 01:27:15,840 --> 01:27:19,920 CLIMATE CHANGE ON HEALTH AND 2406 01:27:19,920 --> 01:27:22,720 JUST FROM A PERSONAL ANECDOTE, 2407 01:27:22,720 --> 01:27:26,440 IN 2020 WE REALLY EXPERIENCED 2408 01:27:26,440 --> 01:27:29,760 THE IMPACT OF WILDFIRE IN OREGON 2409 01:27:29,760 --> 01:27:32,800 WHERE I WAS LIVING, AND IN THE 2410 01:27:32,800 --> 01:27:34,840 MIDDLE OF THE PANDEMIC HAVING 2411 01:27:34,840 --> 01:27:38,760 OUR FAMILY AND FRIENDS AND 2412 01:27:38,760 --> 01:27:41,040 CO-WORKERS EVACUATED FROM THEIR 2413 01:27:41,040 --> 01:27:43,160 HOMES AND FEELING LIKE WE'RE 2414 01:27:43,160 --> 01:27:44,880 LIVING IN THIS ENVIRONMENT WHERE 2415 01:27:44,880 --> 01:27:48,160 THE AIR OUTSIDE OUR HOMES WAS 2416 01:27:48,160 --> 01:27:51,200 NOT BREATHABLE, WAS JUST A 2417 01:27:51,200 --> 01:27:53,440 REALLY DRAMATIC EXAMPLE FOR ME 2418 01:27:53,440 --> 01:27:58,360 OF HOW CLIMATE CHANGE IS REALLY 2419 01:27:58,360 --> 01:27:59,160 IMPACTING OUR HEALTH. 2420 01:27:59,160 --> 01:28:00,400 AND SO I THINK THAT'S SOMETHING 2421 01:28:00,400 --> 01:28:03,720 THAT WE'RE GOING TO NEED TO TAKE 2422 01:28:03,720 --> 01:28:05,360 INTO CONSIDERATION FURTHER AS WE 2423 01:28:05,360 --> 01:28:08,000 GO FORWARD. 2424 01:28:08,000 --> 01:28:08,640 NEXT SLIDE. 2425 01:28:08,640 --> 01:28:13,320 THERE ARE A LOT OF CHALLENGES TO 2426 01:28:13,320 --> 01:28:14,560 STUDYING THE ENVIRONMENT, AND 2427 01:28:14,560 --> 01:28:19,920 FIRST OF ALL JUST MEASURING 2428 01:28:19,920 --> 01:28:21,720 EXPOSURES IS INCREDIBLY COMPLEX. 2429 01:28:21,720 --> 01:28:23,600 EXPOSURES HAPPEN OVER LONG 2430 01:28:23,600 --> 01:28:31,880 PERIODS OF TIME, AND EXPOSURES 2431 01:28:31,880 --> 01:28:34,920 COULD EVEN HAPPEN PRENATALLY OR 2432 01:28:34,920 --> 01:28:36,320 IN YOUR PARENTS COULD IMPACT 2433 01:28:36,320 --> 01:28:37,000 FUTURE GENERATION. 2434 01:28:37,000 --> 01:28:39,040 SO JUST TRYING TO FIGURE OUT 2435 01:28:39,040 --> 01:28:42,760 WHAT IS THE RIGHT TIMING TO 2436 01:28:42,760 --> 01:28:44,840 MEASURE THESE EXPOSURES AND 2437 01:28:44,840 --> 01:28:47,480 NEEDING TO WATCH THE CHANGE IN 2438 01:28:47,480 --> 01:28:50,640 EXPOSURE OVER TIME, AND CAPTURE 2439 01:28:50,640 --> 01:28:55,000 THAT INFORMATION IS REALLY 2440 01:28:55,000 --> 01:28:55,320 COMPLICATED. 2441 01:28:55,320 --> 01:28:57,320 WE NEED ADVANCED GEOSPATIAL 2442 01:28:57,320 --> 01:28:59,520 METHODS, PEOPLE CONTINUE TO MOVE 2443 01:28:59,520 --> 01:29:02,560 AROUND A LOT, AND WE NEED TO BE 2444 01:29:02,560 --> 01:29:09,880 ABLE TO SEE HOW THOSE DIFFERENT 2445 01:29:09,880 --> 01:29:10,480 EXPOSURES GEOSPATIALLY IMPACT 2446 01:29:10,480 --> 01:29:13,200 INDIVIDUALS, WE NEED PERSONAL 2447 01:29:13,200 --> 01:29:14,800 MONITORING TECHNOLOGIES, SO THAT 2448 01:29:14,800 --> 01:29:16,360 WE CAN ACTUALLY SEE WHAT 2449 01:29:16,360 --> 01:29:18,400 INDIVIDUALS HAVE BEEN EXPOSED 2450 01:29:18,400 --> 01:29:19,800 TO, AND HOW THAT EXPOSURE 2451 01:29:19,800 --> 01:29:20,840 CHANGES OVER TIME. 2452 01:29:20,840 --> 01:29:24,320 AND THEN WE NEED STUDIES THAT 2453 01:29:24,320 --> 01:29:25,520 CAN REALLY MEASURE THESE 2454 01:29:25,520 --> 01:29:27,360 EXPOSURES OVER LONG PERIODS OF 2455 01:29:27,360 --> 01:29:27,600 TIME. 2456 01:29:27,600 --> 01:29:29,240 SO THERE'S A LOT OF CHALLENGES 2457 01:29:29,240 --> 01:29:30,640 THAT WE NEED TO OVERCOME IN 2458 01:29:30,640 --> 01:29:34,160 TERMS OF HOW WE WOULD GO ABOUT 2459 01:29:34,160 --> 01:29:36,440 STUDYING THE ENVIRONMENT. 2460 01:29:36,440 --> 01:29:40,000 WE ALSO HAVE SOME OPPORTUNITIES 2461 01:29:40,000 --> 01:29:40,320 THOUGH. 2462 01:29:40,320 --> 01:29:42,600 ONE IS THE EXPOSOME. 2463 01:29:42,600 --> 01:29:44,680 SO REALLY THINKING ABOUT OUR 2464 01:29:44,680 --> 01:29:47,400 EXPOSURES, NOT JUST ONE AT A 2465 01:29:47,400 --> 01:29:49,200 TIME, BUT IN AGGREGATION, 2466 01:29:49,200 --> 01:29:53,120 LOOKING AT HUNDREDS OR THOUSANDS 2467 01:29:53,120 --> 01:29:55,080 OF EXPOSURES TOGETHER. 2468 01:29:55,080 --> 01:29:57,600 AGAIN, CLIMATE CHANGE, AS I 2469 01:29:57,600 --> 01:30:00,000 MENTIONED, ALSO FOCUSING ON 2470 01:30:00,000 --> 01:30:02,720 UNDERSTUDIED POPULATIONS. 2471 01:30:02,720 --> 01:30:04,280 NEXT SLIDE. 2472 01:30:04,280 --> 01:30:08,840 IN TERMS OF THE FUTURE, NEXT 2473 01:30:08,840 --> 01:30:11,680 SLIDE, I REALLY WANT TO LET YOU 2474 01:30:11,680 --> 01:30:14,880 ALL KNOW THAT WE ARE INTERESTED 2475 01:30:14,880 --> 01:30:17,480 IN HEARING PERSPECTIVES FROM 2476 01:30:17,480 --> 01:30:19,000 ACROSS THE ENTIRE COMMUNITY, IN 2477 01:30:19,000 --> 01:30:21,320 TERMS OF WHAT THE PRIORITIES 2478 01:30:21,320 --> 01:30:22,000 SHOULD BE FOR DCCPS. 2479 01:30:22,000 --> 01:30:24,360 AND SO WE'VE PUT OUT A REQUEST 2480 01:30:24,360 --> 01:30:26,400 FOR INFORMATION, THIS IS STILL 2481 01:30:26,400 --> 01:30:28,240 OPEN FOR ANOTHER FEW WEEKS. 2482 01:30:28,240 --> 01:30:31,040 AND I REALLY HOPE THAT EVERYONE 2483 01:30:31,040 --> 01:30:33,000 ON THIS COMMITTEE WILL TAKE A 2484 01:30:33,000 --> 01:30:36,000 FEW MOMENTS TO RESPOND TO THIS 2485 01:30:36,000 --> 01:30:37,680 RFI AND TELL US WHAT YOU THINK 2486 01:30:37,680 --> 01:30:39,120 OUR PRIORITIES SHOULD BE. 2487 01:30:39,120 --> 01:30:44,440 I'LL PUT THE LINK IN THE CHAT 2488 01:30:44,440 --> 01:30:48,040 AFTER I FINISH SPEAKING. 2489 01:30:48,040 --> 01:30:49,120 OH, SORRY, NEXT SLIDE. 2490 01:30:49,120 --> 01:30:51,600 AND I ALSO WOULD LIKE TO POINT 2491 01:30:51,600 --> 01:30:54,680 YOU TO OUR OVERVIEW AND 2492 01:30:54,680 --> 01:30:55,200 HIGHLIGHTS REPORT. 2493 01:30:55,200 --> 01:30:58,640 THE 2021 REPORT IS JUST A REALLY 2494 01:30:58,640 --> 01:31:09,040 EXCELLENT SUMMARY OF THE PAST 20 2495 01:31:09,040 --> 01:31:11,920 YEARS OF DCCPS AND HOW MUCH THIS 2496 01:31:11,920 --> 01:31:13,440 DIVISION AS GROWN AND 2497 01:31:13,440 --> 01:31:14,320 ACCOMPLISHED. 2498 01:31:14,320 --> 01:31:17,400 WE'RE ALREADY PLANNING FOR OUR 2499 01:31:17,400 --> 01:31:18,360 NEXT OVERVIEW AND HIGHLIGHTS 2500 01:31:18,360 --> 01:31:21,800 REPORT IN THE FALL, THAT ONE 2501 01:31:21,800 --> 01:31:23,720 WILL REALLY HAVE MORE OF A 2502 01:31:23,720 --> 01:31:24,800 FORWARD-THINKING VIEW AND WHERE 2503 01:31:24,800 --> 01:31:27,160 ARE WE GOING IN THE FUTURE. 2504 01:31:27,160 --> 01:31:29,000 SO, I HOPE THAT THESE DOCUMENTS 2505 01:31:29,000 --> 01:31:38,000 ARE SOMETHING THAT YOU'LL LOOK 2506 01:31:38,000 --> 01:31:39,200 AT, AND CONSIDER IN TERMS OF 2507 01:31:39,200 --> 01:31:41,320 YOUR THOUGHTS AND PRIORITIES FOR 2508 01:31:41,320 --> 01:31:42,000 THE DIVISION. 2509 01:31:42,000 --> 01:31:49,400 NEXT SLIDE WITH THAT I WILL HAND 2510 01:31:49,400 --> 01:31:52,520 IT BACK FOR QUESTIONS. 2511 01:31:52,520 --> 01:31:54,720 >> THANK YOU FOR JOINING US AND 2512 01:31:54,720 --> 01:31:55,000 PRESENTING. 2513 01:31:55,000 --> 01:31:56,840 THAT WAS A REALLY HELPFUL 2514 01:31:56,840 --> 01:32:00,320 SUMMARY OF A LOT OF WORK YOU'RE 2515 01:32:00,320 --> 01:32:01,400 TAKING ON. 2516 01:32:01,400 --> 01:32:03,080 I DID HAVE ONE QUICK QUESTION 2517 01:32:03,080 --> 01:32:04,680 BEFORE I TURN IT OVER TO OTHERS 2518 01:32:04,680 --> 01:32:07,880 ON THE GROUP TO ASK QUESTIONS. 2519 01:32:07,880 --> 01:32:10,760 HOW ARE YOU ALIGNING THE WORK 2520 01:32:10,760 --> 01:32:12,240 THAT YOU'RE DOING WITH THE 2521 01:32:12,240 --> 01:32:13,880 CANCER PROGRAMS THAT ARE 2522 01:32:13,880 --> 01:32:16,680 HAPPENING THROUGH CDC OR SORT OF 2523 01:32:16,680 --> 01:32:21,080 IN PARTNERSHIP WITH CDC, HOW IS 2524 01:32:21,080 --> 01:32:21,880 THAT HAPPENING? 2525 01:32:21,880 --> 01:32:23,960 >> YEAH, SO THERE ARE MANY 2526 01:32:23,960 --> 01:32:25,360 DIFFERENT LEVELS WITHIN OUR 2527 01:32:25,360 --> 01:32:27,760 PROGRAM, WHERE WE CONNECT WITH 2528 01:32:27,760 --> 01:32:30,400 OTHER FEDERAL AGENCIES. 2529 01:32:30,400 --> 01:32:32,800 SO, I'M SPEAKING DIRECTLY WITH 2530 01:32:32,800 --> 01:32:36,040 LEADERSHIP AT CDC, BUT THERE ARE 2531 01:32:36,040 --> 01:32:37,280 ALSO STAFF, INDIVIDUAL STAFF 2532 01:32:37,280 --> 01:32:39,360 WITHIN OUR DIVISION WHO WORK 2533 01:32:39,360 --> 01:32:42,960 CLOSELY WITH THE CDC, WITH THE 2534 01:32:42,960 --> 01:32:45,120 FDA, WITH HRSA, WITH WHATEVER 2535 01:32:45,120 --> 01:32:47,200 THE PARTNER ORGANIZATIONS ARE 2536 01:32:47,200 --> 01:32:49,680 THAT MAKE SENSE, ON SPECIFIC 2537 01:32:49,680 --> 01:32:51,960 TOPICS AND SPECIFIC PROGRAMS. 2538 01:32:51,960 --> 01:32:54,000 SO, I THINK THAT CONNECTION IS 2539 01:32:54,000 --> 01:33:03,800 HAPPENING AT MULTIPLE LEVELS 2540 01:33:03,800 --> 01:33:04,280 THROUGHOUT OUR DIVISION. 2541 01:33:04,280 --> 01:33:04,560 >> NICOLE? 2542 01:33:04,560 --> 01:33:08,360 >>> THANK YOU FOR THE 2543 01:33:08,360 --> 01:33:09,000 PRESENTATION, KATRINA. 2544 01:33:09,000 --> 01:33:10,560 GREAT TO SEE ALL YOU'RE WORKING 2545 01:33:10,560 --> 01:33:11,760 ON, IT'S QUITE A BIT. 2546 01:33:11,760 --> 01:33:16,360 I HAD A QUESTION ABOUT SEER. 2547 01:33:16,360 --> 01:33:18,880 AND REALLY AM HAPPY TO SEE THAT 2548 01:33:18,880 --> 01:33:21,920 IT WENT FROM ONE-THIRD OF THE 2549 01:33:21,920 --> 01:33:24,400 COVERAGE TO 50%. 2550 01:33:24,400 --> 01:33:26,160 AND I'M CURIOUS BECAUSE OF THE 2551 01:33:26,160 --> 01:33:28,680 MAPS EARLIER DR. SHARPLESS 2552 01:33:28,680 --> 01:33:30,960 SHOWED, THERE ARE STATES THAT 2553 01:33:30,960 --> 01:33:33,200 HAVEN'T SEEN MUCH CHANGE IN 2554 01:33:33,200 --> 01:33:35,040 CANCER MORTALITY OR AS MUCH AS 2555 01:33:35,040 --> 01:33:38,160 WE WOULD LIKE TO SEE THAT AREN'T 2556 01:33:38,160 --> 01:33:40,360 ACTUALLY INCLUDED IN THE SEER 2557 01:33:40,360 --> 01:33:41,200 COVERAGE. 2558 01:33:41,200 --> 01:33:42,520 IS THERE PLANS TO CONTINUE TO 2559 01:33:42,520 --> 01:33:45,600 EXPAND THAT OR ARE THERE 2560 01:33:45,600 --> 01:33:48,560 BARRIERS AS TO WHY THOSE AREN'T 2561 01:33:48,560 --> 01:33:49,520 INCLUDED YET? 2562 01:33:49,520 --> 01:33:51,720 >> YEAH, THAT'S A GREAT 2563 01:33:51,720 --> 01:33:52,240 QUESTION. 2564 01:33:52,240 --> 01:33:55,640 AND SO IT ACTUALLY CONNECTS TO 2565 01:33:55,640 --> 01:34:01,440 THE PRIOR QUESTION IN TERMS OF 2566 01:34:01,440 --> 01:34:03,640 RELATIONSHIPS WITH OTHER FEDERAL 2567 01:34:03,640 --> 01:34:04,520 AGENCIES. 2568 01:34:04,520 --> 01:34:06,600 THERE'S ANOTHER NETWORK THE CDC 2569 01:34:06,600 --> 01:34:11,600 FUNDS, AND WE WORK VERY CLOSELY 2570 01:34:11,600 --> 01:34:11,880 TOGETHER. 2571 01:34:11,880 --> 01:34:15,320 AND SO KIND OF BETWEEN THE TWO 2572 01:34:15,320 --> 01:34:18,120 NETWORKS, THERE IS MORE COVERAGE 2573 01:34:18,120 --> 01:34:20,560 ACROSS THE ENTIRE UNITED STATES. 2574 01:34:20,560 --> 01:34:24,800 AND WE WORK CLOSELY WITH THEM IN 2575 01:34:24,800 --> 01:34:26,840 TERMS OF PUTTING OUT REPORTS 2576 01:34:26,840 --> 01:34:31,040 THAT USE DATA FROM BOTH NETWORKS 2577 01:34:31,040 --> 01:34:36,240 THAT WOULD COME OUT ON AN ANNUAL 2578 01:34:36,240 --> 01:34:36,760 BASIS. 2579 01:34:36,760 --> 01:34:39,200 SO, I THINK THERE IS MORE 2580 01:34:39,200 --> 01:34:41,680 COVERAGE ACROSS THE UNITED 2581 01:34:41,680 --> 01:34:45,680 STATES BEYOND SEER THAT IS 2582 01:34:45,680 --> 01:34:46,200 INCORPORATED INTO OTHER 2583 01:34:46,200 --> 01:34:46,720 OPPORTUNITIES. 2584 01:34:46,720 --> 01:34:47,760 >> COULD I ADD TO THAT? 2585 01:34:47,760 --> 01:34:48,040 >> YES. 2586 01:34:48,040 --> 01:34:49,080 >> ALL PATIENTS IN THE UNITED 2587 01:34:49,080 --> 01:34:51,360 STATES ARE ON A REGISTRY, BUT 2588 01:34:51,360 --> 01:34:52,840 ABOUT HALF ARE ON CDC 2589 01:34:52,840 --> 01:34:58,320 REGISTRIES, THE REST ARE ON 2590 01:34:58,320 --> 01:34:58,680 SEER. 2591 01:34:58,680 --> 01:34:59,640 WE ACTUALLY WOULD LIKE OTHER 2592 01:34:59,640 --> 01:35:01,040 PEOPLE TO BE ON SEER. 2593 01:35:01,040 --> 01:35:02,200 BUT THE STATES DON'T ALWAYS 2594 01:35:02,200 --> 01:35:03,000 AGREE WITH THAT. 2595 01:35:03,000 --> 01:35:05,120 SOME STATES LIKE BEING ON THE 2596 01:35:05,120 --> 01:35:05,920 CDC REGISTRY. 2597 01:35:05,920 --> 01:35:07,960 AND HAVE DECIDED NOT TO APPLY 2598 01:35:07,960 --> 01:35:09,760 FOR SEER FUNDING, FOR EXAMPLE. 2599 01:35:09,760 --> 01:35:11,800 AND SO IT'S A MIX OF THAT. 2600 01:35:11,800 --> 01:35:13,000 SOME PEOPLE ARE HAPPY WITH THE 2601 01:35:13,000 --> 01:35:14,200 REGISTRY THEY GOT. 2602 01:35:14,200 --> 01:35:18,440 SOME PEOPLE DON'T WANT TO CHANGE 2603 01:35:18,440 --> 01:35:18,800 THAT. 2604 01:35:18,800 --> 01:35:22,760 AND OTHER STATES LIKE THE SEER 2605 01:35:22,760 --> 01:35:23,920 PROGRAM AND APPLIED. 2606 01:35:23,920 --> 01:35:26,600 I DON'T THINK WE CAN AFFORD TO 2607 01:35:26,600 --> 01:35:27,520 COVER EVERYBODY IN THE UNITED 2608 01:35:27,520 --> 01:35:29,080 STATES EVEN IF WE WANTED TO BUT 2609 01:35:29,080 --> 01:35:30,360 IT'S A REASONABLE QUESTION TO 2610 01:35:30,360 --> 01:35:31,800 ASK HOW MUCH BIGGER SEER SHOULD 2611 01:35:31,800 --> 01:35:33,800 BE THAN IT IS TODAY FOR STATES 2612 01:35:33,800 --> 01:35:36,960 THAT STILL WANT TO PARTICIPATE. 2613 01:35:36,960 --> 01:35:37,520 2614 01:35:37,520 --> 01:35:39,800 >> THANKS, NED. 2615 01:35:39,800 --> 01:35:42,960 2616 01:35:42,960 --> 01:35:44,360 >> I WAS CURIOUS, FOR OUR GROUP 2617 01:35:44,360 --> 01:35:46,720 WE'RE EXCITED TO HAVE OTHER 2618 01:35:46,720 --> 01:35:48,000 RESEARCH ADVOCACY GROUPS 2619 01:35:48,000 --> 01:35:49,520 PRESENTING TO US, AND HOW THEY 2620 01:35:49,520 --> 01:35:51,360 ARE RUNNING OUT THEIR PROGRAMS 2621 01:35:51,360 --> 01:35:53,640 BUT HOW CAN RESEARCH ADVOCACY 2622 01:35:53,640 --> 01:35:55,520 INDIVIDUALS OR GROUPS OR 2623 01:35:55,520 --> 01:36:00,800 ORGANIZATIONS BETTER PARTNER 2624 01:36:00,800 --> 01:36:04,200 WITH THE DCCPS? 2625 01:36:04,200 --> 01:36:05,040 >> YEAH, I THINK RESEARCHERS 2626 01:36:05,040 --> 01:36:10,280 NEED HELP SOMETIMES WITH 2627 01:36:10,280 --> 01:36:11,280 IDENTIFYING PARTNERS WITH 2628 01:36:11,280 --> 01:36:13,680 ADVOCACY ORGANIZATIONS AND 2629 01:36:13,680 --> 01:36:15,640 EMBEDDING THOSE PARTNERS INTO 2630 01:36:15,640 --> 01:36:16,640 THEIR RESEARCH PROGRAMS. 2631 01:36:16,640 --> 01:36:21,000 AND SO I THINK REACHING OUT TO 2632 01:36:21,000 --> 01:36:25,280 LOCAL ORGANIZATIONS THAT ARE 2633 01:36:25,280 --> 01:36:26,600 CONDUCTING RESEARCH AND TRYING 2634 01:36:26,600 --> 01:36:29,000 TO SPEAK WITH THE RESEARCHERS IN 2635 01:36:29,000 --> 01:36:31,960 THOSE AREAS WOULD BE ONE WAY 2636 01:36:31,960 --> 01:36:35,080 THAT YOU COULD BE PRO-ACTIVE 2637 01:36:35,080 --> 01:36:37,040 FROM THE ADVOCACY SIDE, RATHER 2638 01:36:37,040 --> 01:36:39,640 THAN FROM THE RESEARCHER SIDE 2639 01:36:39,640 --> 01:36:43,520 REACHING OUT TO YOU. 2640 01:36:43,520 --> 01:36:45,000 >> DO YOU -- I'M SORRY. 2641 01:36:45,000 --> 01:36:46,240 WAS THERE ANOTHER QUESTION? 2642 01:36:46,240 --> 01:36:50,360 I JUST WANT TO MAKE SURE. 2643 01:36:50,360 --> 01:36:53,040 I DON'T SEE ANY OTHER QUESTIONS. 2644 01:36:53,040 --> 01:36:55,120 I DID ALSO HAVE ONE FINAL -- I 2645 01:36:55,120 --> 01:36:56,080 WON'T ASK A HUNDRED QUESTIONS 2646 01:36:56,080 --> 01:36:57,600 BECAUSE I COULD ASK YOU A 2647 01:36:57,600 --> 01:36:58,960 HUNDRED QUESTIONS BUT YOU HAVE A 2648 01:36:58,960 --> 01:37:00,200 LOT ON YOUR PLATE. 2649 01:37:00,200 --> 01:37:04,600 I'M SURE THERE'S MORE TO COME. 2650 01:37:04,600 --> 01:37:06,520 BUT I'M CURIOUS WHAT -- HOW YOU 2651 01:37:06,520 --> 01:37:07,720 SEE THE FUTURE OF HEALTH EQUITY 2652 01:37:07,720 --> 01:37:10,840 AND WHAT YOU MIGHT BE DOING 2653 01:37:10,840 --> 01:37:11,600 DIFFERENTLY, HOW IT'S GOING 2654 01:37:11,600 --> 01:37:16,240 TO -- NOW THAT YOU'VE BEEN HERE 2655 01:37:16,240 --> 01:37:20,600 FIVE WHOLE MONTHS WITH NCI ARE 2656 01:37:20,600 --> 01:37:21,800 THERE THINGS YOU COULD SHARE AS 2657 01:37:21,800 --> 01:37:24,720 FAR AS YOUR VISION HOW YOU PLAN 2658 01:37:24,720 --> 01:37:26,480 TO ADDRESS HEALTH EQUITY? 2659 01:37:26,480 --> 01:37:29,040 I APPRECIATE YOU INCLUDING THAT 2660 01:37:29,040 --> 01:37:30,800 IN YOUR SLIDES BUT ARE THERE 2661 01:37:30,800 --> 01:37:31,200 ADDITIONAL THOUGHTS. 2662 01:37:31,200 --> 01:37:33,160 >> ONE THING I WOULD LIKE TO SEE 2663 01:37:33,160 --> 01:37:36,080 CHANGE IS A CHANGE IN OUR WORK 2664 01:37:36,080 --> 01:37:36,520 FORCE. 2665 01:37:36,520 --> 01:37:38,960 AND SO I THINK THAT WE REALLY -- 2666 01:37:38,960 --> 01:37:42,120 UNTIL WE HAVE A CHANGE IN OUR 2667 01:37:42,120 --> 01:37:45,200 WORKFORCE AND MORE 2668 01:37:45,200 --> 01:37:46,360 REPRESENTATION WITHIN OUR 2669 01:37:46,360 --> 01:37:47,920 WORKFORCE, IT'S CHALLENGING FOR 2670 01:37:47,920 --> 01:37:51,440 US TO MAKE STRONG INROADS, IN 2671 01:37:51,440 --> 01:37:55,960 HEALTH EQUITY AND DIVERSITY. 2672 01:37:55,960 --> 01:37:56,680 AND HEALTH DISPARITIES. 2673 01:37:56,680 --> 01:38:00,680 SO I THINK THAT'S SOMETHING THAT 2674 01:38:00,680 --> 01:38:02,560 IS REALLY IMPORTANT THAT THE 2675 01:38:02,560 --> 01:38:05,280 ENTIRE NIH COMMUNITY NEEDS TO 2676 01:38:05,280 --> 01:38:06,160 FOCUS ON. 2677 01:38:06,160 --> 01:38:07,000 >> I REALLY APPRECIATE YOU 2678 01:38:07,000 --> 01:38:08,560 SAYING THAT BECAUSE I KNOW THAT 2679 01:38:08,560 --> 01:38:10,200 PROBABLY ALL OF US ON THIS CALL 2680 01:38:10,200 --> 01:38:12,400 AGREE THAT WE HEAR THAT FROM THE 2681 01:38:12,400 --> 01:38:16,960 COMMUNITY THAT BEING ABLE TO SEE 2682 01:38:16,960 --> 01:38:18,160 RESEARCHERS THAT REFLECT YOUR IS 2683 01:38:18,160 --> 01:38:21,040 SO IMPORTANT BUILDING TRUST AND 2684 01:38:21,040 --> 01:38:21,840 RELATIONSHIP, BUILDING 2685 01:38:21,840 --> 01:38:24,080 ENGAGEMENT BY ADVOCATES AND 2686 01:38:24,080 --> 01:38:25,880 PATIENTS AND FAMILIES. 2687 01:38:25,880 --> 01:38:27,920 THAT'S EXCITING TO HEAR. 2688 01:38:27,920 --> 01:38:29,880 WE APPRECIATE YOU JOINING US. 2689 01:38:29,880 --> 01:38:32,200 I HOPE YOU COME BACK. 2690 01:38:32,200 --> 01:38:34,200 AND SHARE AN UPDATE, MAYBE AFTER 2691 01:38:34,200 --> 01:38:35,000 A YEAR. 2692 01:38:35,000 --> 01:38:36,080 BUT WE REALLY LOOK FORWARD TO 2693 01:38:36,080 --> 01:38:36,760 HEARING MORE. 2694 01:38:36,760 --> 01:38:38,520 IF THERE'S MORE WE CAN DO FOR 2695 01:38:38,520 --> 01:38:39,920 YOU, PLEASE DO LET US KNOW. 2696 01:38:39,920 --> 01:38:41,360 I KNOW EVERYONE ON THE CALL IS 2697 01:38:41,360 --> 01:38:43,480 VERY INTERESTED IN THE WORK THAT 2698 01:38:43,480 --> 01:38:45,720 YOU'RE DOING. 2699 01:38:45,720 --> 01:38:46,000 >> GREAT. 2700 01:38:46,000 --> 01:38:46,480 THANK YOU. 2701 01:38:46,480 --> 01:38:49,880 >> NEXT WE HAVE THE OFFICE OF 2702 01:38:49,880 --> 01:39:00,680 CANCER SURVIVORSHIP, WE HAVE DR. 2703 01:39:00,680 --> 01:39:04,280 EMILY TONOREZOS, LOOKING FORWARD 2704 01:39:04,280 --> 01:39:07,960 TO HEARING YOUR UPDATE. 2705 01:39:07,960 --> 01:39:08,800 >> THANK YOU FOR HAVING ME. 2706 01:39:08,800 --> 01:39:11,560 YOU DID A GREAT JOB WITH MY 2707 01:39:11,560 --> 01:39:11,840 NAME. 2708 01:39:11,840 --> 01:39:12,800 >> THANK YOU! 2709 01:39:12,800 --> 01:39:14,240 I WAS NERVOUS ABOUT THAT. 2710 01:39:14,240 --> 01:39:15,160 THANK YOU. 2711 01:39:15,160 --> 01:39:15,920 >> YOU DID GREAT. 2712 01:39:15,920 --> 01:39:19,800 I RUN INTO THAT EVERYWHERE I GO. 2713 01:39:19,800 --> 01:39:21,800 I ACTUALLY GREW UP WITH THE LAST 2714 01:39:21,800 --> 01:39:24,200 NAME SMITH, I WAS EXCITED TO GET 2715 01:39:24,200 --> 01:39:28,160 A LAST NAME THAT IS UNIQUE. 2716 01:39:28,160 --> 01:39:31,120 IT'S CERTAINLY UNIQUE. 2717 01:39:31,120 --> 01:39:34,400 I ALWAYS ENJOY THE CHALLENGES OF 2718 01:39:34,400 --> 01:39:35,680 BEING INTRODUCED. 2719 01:39:35,680 --> 01:39:37,400 IT'S REALLY A TREMENDOUS 2720 01:39:37,400 --> 01:39:39,720 PLEASURE TO BE HERE AND I CANNOT 2721 01:39:39,720 --> 01:39:41,800 TELL YOU HOW GRATEFUL I AM FOR 2722 01:39:41,800 --> 01:39:43,560 THE OPPORTUNITY TO SPEAK WITH 2723 01:39:43,560 --> 01:39:45,600 YOU GUYS ABOUT THE OFFICE OF 2724 01:39:45,600 --> 01:39:48,800 CANCER SURVIVORSHIP. 2725 01:39:48,800 --> 01:39:49,080 NEXT SLIDE. 2726 01:39:49,080 --> 01:39:53,840 I JUST WANT TO TAKE US BACK FOR 2727 01:39:53,840 --> 01:39:58,400 A MOMENT TO 1976, WHEN A 2728 01:39:58,400 --> 01:40:00,400 RADIATION ONCOLOGIST WROTE THIS 2729 01:40:00,400 --> 01:40:02,440 PAPER, CURE IS NOT ENOUGH. 2730 01:40:02,440 --> 01:40:03,920 AND HE WAS WORKING IN PEDIATRIC 2731 01:40:03,920 --> 01:40:05,600 CANCER AND HAD BEEN FOR MANY 2732 01:40:05,600 --> 01:40:07,520 YEARS AT THIS POINT. 2733 01:40:07,520 --> 01:40:12,640 THE PAPER IS A REVIEW OF THE 2734 01:40:12,640 --> 01:40:13,840 SUCCESSES UP TO THIS POINT. 2735 01:40:13,840 --> 01:40:16,440 BUT I THINK WHAT HE SAID ABOUT 2736 01:40:16,440 --> 01:40:17,560 SURVIVORSHIP IS SO IMPORTANT. 2737 01:40:17,560 --> 01:40:19,640 HE WROTE, IT IS CLEAR THAT THE 2738 01:40:19,640 --> 01:40:22,000 CHILD CURED OF CANCER MUST BE 2739 01:40:22,000 --> 01:40:23,880 FOLLOWED FOR LIFE, NOT SO MUCH 2740 01:40:23,880 --> 01:40:24,880 BECAUSE LATE RECURRENCE OF 2741 01:40:24,880 --> 01:40:27,000 DISEASE IS FEARED AS TO PERMIT 2742 01:40:27,000 --> 01:40:31,760 EARLY DETECTION OF THE DELAYED 2743 01:40:31,760 --> 01:40:38,280 CONSEQUENCES OF RADIO AND 2744 01:40:38,280 --> 01:40:39,080 CHEMOTHERAPY. 2745 01:40:39,080 --> 01:40:40,840 TEN YEARS LATER MULLEN WROTE 2746 01:40:40,840 --> 01:40:41,480 THIS PAPER IN THE NEW ENGLAND 2747 01:40:41,480 --> 01:40:43,600 JOURNAL OF MEDICINE, WHERE HE 2748 01:40:43,600 --> 01:40:44,800 SAID THAT DESPITE SUCCESS ON THE 2749 01:40:44,800 --> 01:40:45,880 TREATMENT FRONT, WE HAVE DONE 2750 01:40:45,880 --> 01:40:49,200 VERY LITTLE IN A CONCERTED AND 2751 01:40:49,200 --> 01:40:50,600 WELL-PLANNED FASHION TO 2752 01:40:50,600 --> 01:40:51,880 INVESTIGATE AND ADDRESS THE 2753 01:40:51,880 --> 01:40:52,360 PROBLEM OF SURVIVORS. 2754 01:40:52,360 --> 01:40:55,200 IT IS AS IF WE HAVE INVENTED 2755 01:40:55,200 --> 01:40:56,600 SOPHISTICATED TECHNIQUES TO SAVE 2756 01:40:56,600 --> 01:40:57,880 PEOPLE FROM DROWNING BUT ONCE 2757 01:40:57,880 --> 01:40:59,200 THEY HAVE BEEN PULLED FROM THE 2758 01:40:59,200 --> 01:41:01,000 WATER WE LEAVE THEM ON THE DOCK 2759 01:41:01,000 --> 01:41:04,320 TO COUGH AND SPUTTER ON THEIR 2760 01:41:04,320 --> 01:41:05,440 OWN IN THE BELIEF WE HAVE DONE 2761 01:41:05,440 --> 01:41:10,440 ALL WE CAN. 2762 01:41:10,440 --> 01:41:10,800 NEXT SLIDE. 2763 01:41:10,800 --> 01:41:13,840 IT WAS IN RESPONSE ADVOCATES 2764 01:41:13,840 --> 01:41:15,080 LIKE DR. MULLEN AND OTHERS THAT 2765 01:41:15,080 --> 01:41:18,840 THE OFFICE OF CANCER 2766 01:41:18,840 --> 01:41:19,400 SURVIVORSHIP WAS CREATED IN 2767 01:41:19,400 --> 01:41:19,600 1996. 2768 01:41:19,600 --> 01:41:24,720 IT WAS IT WAS SAID THE OFFICE 2769 01:41:24,720 --> 01:41:28,720 WAS CREATED IN RECOGNITION OF 2770 01:41:28,720 --> 01:41:30,320 THE LARGE NUMBER OF INDIVIDUALS 2771 01:41:30,320 --> 01:41:32,320 WITH POORLY UNDERSTOOD NEEDS. 2772 01:41:32,320 --> 01:41:33,120 NEXT SLIDE PLEASE. 2773 01:41:33,120 --> 01:41:35,600 THE MISSION OF THE OFFICE OF 2774 01:41:35,600 --> 01:41:36,920 CANCER SURVIVORSHIP IS TO 2775 01:41:36,920 --> 01:41:39,200 ENHANCE THE QUALITY AND LENGTH 2776 01:41:39,200 --> 01:41:41,920 OF SURVIVAL FOR ALL PERSONS 2777 01:41:41,920 --> 01:41:43,760 DIAGNOSED WITH CANCER AND 2778 01:41:43,760 --> 01:41:44,800 PREVENT, MINIMIZE, OR MANAGE 2779 01:41:44,800 --> 01:41:51,960 ADVERSE EFFECTS OF CANCER AND 2780 01:41:51,960 --> 01:41:55,480 ITS TREATMENT. 2781 01:41:55,480 --> 01:41:56,800 I WAS INTERESTED WHEN KRISTEN 2782 01:41:56,800 --> 01:41:59,000 BROAD UP THE ISSUE OF LANGUAGE. 2783 01:41:59,000 --> 01:42:01,360 WE HAVE A CONUNDRUM, NOT 2784 01:42:01,360 --> 01:42:03,120 EVERYBODY IDENTIFIES WITH THIS 2785 01:42:03,120 --> 01:42:03,880 WORD, SURVIVOR. 2786 01:42:03,880 --> 01:42:07,000 AND WE'VE HAD TO MAKE OUR PEACE 2787 01:42:07,000 --> 01:42:10,680 WITH IT AND TO USE THE TERM 2788 01:42:10,680 --> 01:42:13,200 SURVIVOR IN A RESEARCH SETTING 2789 01:42:13,200 --> 01:42:14,520 WITH THE UNDERSTANDING NOT EVERY 2790 01:42:14,520 --> 01:42:15,480 PERSON OR FAMILY MEMBER OF A 2791 01:42:15,480 --> 01:42:17,600 PERSON WHO HAS BEEN DIAGNOSED 2792 01:42:17,600 --> 01:42:19,640 WITH CANCER IDENTIFIES WITH THE 2793 01:42:19,640 --> 01:42:20,080 WORD "SURVIVOR." 2794 01:42:20,080 --> 01:42:22,800 AND OVER THE LAST YEAR WE CAME 2795 01:42:22,800 --> 01:42:24,520 UP WITH THIS NEW FIGURE TO TRY 2796 01:42:24,520 --> 01:42:27,480 TO ENCOMPASS SOME OF THE THINGS 2797 01:42:27,480 --> 01:42:31,720 THAT CAN BE GOING ON DURING 2798 01:42:31,720 --> 01:42:33,320 CANCER SURVIVORSHIP WITH EARLY 2799 01:42:33,320 --> 01:42:35,160 STAGE CANCER, SOMEBODY WHO IS 2800 01:42:35,160 --> 01:42:38,200 DIAGNOSED WITH ADVANCED OR 2801 01:42:38,200 --> 01:42:39,600 METASTATIC CANCER, OR PROGRESSES 2802 01:42:39,600 --> 01:42:40,400 TO METASTATIC CANCER, AND 2803 01:42:40,400 --> 01:42:42,600 SOMEONE WHO IS DIAGNOSED WITH OR 2804 01:42:42,600 --> 01:42:44,440 PROGRESSES TO END STAGE CANCER. 2805 01:42:44,440 --> 01:42:46,400 THERE ARE DIFFERENT GOALS OF 2806 01:42:46,400 --> 01:42:48,360 CARE FOR PEOPLE AT DIFFERENT 2807 01:42:48,360 --> 01:42:50,200 TIMES IN THIS FIGURE, DIFFERENT 2808 01:42:50,200 --> 01:42:51,920 PLACES IN THIS FIGURE. 2809 01:42:51,920 --> 01:42:53,760 IT'S SOMETHING THAT WE'RE DOING 2810 01:42:53,760 --> 01:42:57,560 OUR BEST TO TRY TO UNDERSTAND. 2811 01:42:57,560 --> 01:42:59,200 NEXT SLIDE PLEASE. 2812 01:42:59,200 --> 01:43:03,320 MY IMMEDIATE PREDECESSOR CALLED 2813 01:43:03,320 --> 01:43:04,000 ATTENTION TO THE POPULATION, 2814 01:43:04,000 --> 01:43:05,560 MIDDLE POPULATION OF PEOPLE WHO 2815 01:43:05,560 --> 01:43:08,040 ARE LIVING WITH ADVANCED OR 2816 01:43:08,040 --> 01:43:10,240 METASTATIC CANCER, AND THIS 2817 01:43:10,240 --> 01:43:12,360 PAPER FROM ANGELA AND OTHERS 2818 01:43:12,360 --> 01:43:15,080 CAME OUT TO ESTIMATE THE NUMBER 2819 01:43:15,080 --> 01:43:16,840 OF WOMEN LIVING WITH METASTATIC 2820 01:43:16,840 --> 01:43:17,360 BREAST CANCER. 2821 01:43:17,360 --> 01:43:20,800 AND WHAT YOU CAN SEE IS FROM THE 2822 01:43:20,800 --> 01:43:22,800 YEAR 1990 TO YEAR 2020, THE 2823 01:43:22,800 --> 01:43:23,720 NUMBERS HAVE GROWN TREMENDOUSLY. 2824 01:43:23,720 --> 01:43:26,040 THIS IS ONE OF THE FEW PLACES 2825 01:43:26,040 --> 01:43:30,360 WHERE WE SEE ACTUALLY THE 2826 01:43:30,360 --> 01:43:32,240 PREVALENCE OF METASTATIC CANCER, 2827 01:43:32,240 --> 01:43:33,080 PREVALENCE OF CANCER INCREASING, 2828 01:43:33,080 --> 01:43:34,720 WHEN YOU SPECIFICALLY LOOK AT 2829 01:43:34,720 --> 01:43:37,000 THOSE WOMEN WHO ARE LIVING WITH 2830 01:43:37,000 --> 01:43:38,120 METASTATIC BREAST CANCER. 2831 01:43:38,120 --> 01:43:42,520 I JUST WANT TO POINT BACK TO THE 2832 01:43:42,520 --> 01:43:43,960 COMMENTS DR. SHARPLESS MADE 2833 01:43:43,960 --> 01:43:46,560 ABOUT JOE BIDEN AND JILL BIDEN'S 2834 01:43:46,560 --> 01:43:48,320 WORDS, REGARDENING ENDING CANCER 2835 01:43:48,320 --> 01:43:51,440 AS WE KNOW IT. 2836 01:43:51,440 --> 01:43:52,680 PART OF DECREASING CANCER 2837 01:43:52,680 --> 01:43:54,040 MORTALITY IS INCREASING THE 2838 01:43:54,040 --> 01:43:56,040 LENGTH OF TIME THAT PEOPLE LIVE 2839 01:43:56,040 --> 01:43:58,560 AFTER A DIAGNOSIS WITH CANCER. 2840 01:43:58,560 --> 01:44:00,320 THAT MEANS THIS POPULATION 2841 01:44:00,320 --> 01:44:03,200 SPECIFICALLY, BECAUSE THESE ARE 2842 01:44:03,200 --> 01:44:05,120 PEOPLE WHO ARE LIVING, AND SO 2843 01:44:05,120 --> 01:44:06,800 IT'S VERY IMPORTANT THAT WE 2844 01:44:06,800 --> 01:44:08,080 ACKNOWLEDGE THEM, THAT WE COUNT 2845 01:44:08,080 --> 01:44:09,760 THEM, AND THAT WE THINK ABOUT 2846 01:44:09,760 --> 01:44:12,120 WHAT THEY MIGHT NEED. 2847 01:44:12,120 --> 01:44:12,680 NEXT SLIDE PLEASE. 2848 01:44:12,680 --> 01:44:16,280 AND SO WITH THAT IN MIND, DEB 2849 01:44:16,280 --> 01:44:18,320 MAYER WHO CAME BEFORE ME IN THE 2850 01:44:18,320 --> 01:44:19,680 OFFICE OF CANCER SURVIVORSHIP 2851 01:44:19,680 --> 01:44:21,680 WORKED TO UPDATE OUR DEFINITION. 2852 01:44:21,680 --> 01:44:23,200 THEY ADDED SOME LANGUAGE. 2853 01:44:23,200 --> 01:44:25,000 WE'VE ALWAYS SAID THAT AN 2854 01:44:25,000 --> 01:44:26,200 INDIVIDUAL IS CONSIDERED A 2855 01:44:26,200 --> 01:44:27,840 CANCER SURVIVOR FROM THE 2856 01:44:27,840 --> 01:44:29,520 DIAGNOSIS THROUGH THE BALANCE OF 2857 01:44:29,520 --> 01:44:29,960 LIFE. 2858 01:44:29,960 --> 01:44:31,280 AND THAT'S A DEFINITION THAT 2859 01:44:31,280 --> 01:44:34,880 REALLY CAME FROM THE ADVOCACY 2860 01:44:34,880 --> 01:44:35,160 COMMUNITY. 2861 01:44:35,160 --> 01:44:36,360 OF COURSE, SOME OF YOU ARE 2862 01:44:36,360 --> 01:44:38,280 PROBABLY TOO YOUNG TO KNOW THIS 2863 01:44:38,280 --> 01:44:39,960 BUT PRIOR TO THAT ACTUALLY 2864 01:44:39,960 --> 01:44:42,120 PEOPLE DIAGNOSED WITH CANCER 2865 01:44:42,120 --> 01:44:43,000 WERE CALLED CANCER VICTIMS. 2866 01:44:43,000 --> 01:44:45,560 WE STILL HEAR THAT WORD, VICTIM, 2867 01:44:45,560 --> 01:44:47,040 WITH REGARDS TO SOME OTHER 2868 01:44:47,040 --> 01:44:48,920 ILLNESSES BUT THAT WAS HOW 2869 01:44:48,920 --> 01:44:50,640 PEOPLE WITH CANCER WERE REFERRED 2870 01:44:50,640 --> 01:44:50,920 TO. 2871 01:44:50,920 --> 01:44:52,280 ADVOCATES SAID WE DON'T WANT TO 2872 01:44:52,280 --> 01:44:53,960 BE CONSIDERED VICTIMS. 2873 01:44:53,960 --> 01:44:56,000 WE WANT TO BE CONSIDERED 2874 01:44:56,000 --> 01:44:56,280 SURVIVORS. 2875 01:44:56,280 --> 01:44:58,760 WHAT DR. MAYER DID WAS SHE 2876 01:44:58,760 --> 01:44:59,680 SPECIFICALLY ADDED THIS LANGUAGE 2877 01:44:59,680 --> 01:45:01,040 TO SAY SURVIVORS INCLUDE THOSE 2878 01:45:01,040 --> 01:45:03,200 WHO ARE LIVING WITH CANCER AND 2879 01:45:03,200 --> 01:45:05,520 FREE OF CANCER. 2880 01:45:05,520 --> 01:45:07,040 AND THAT SURVIVORS CAN GO 2881 01:45:07,040 --> 01:45:08,600 THROUGH PERIODS ON OR OFF 2882 01:45:08,600 --> 01:45:10,000 TREATMENT, AND BE EXPECTED TO 2883 01:45:10,000 --> 01:45:11,960 NEED TREATMENT AGAIN IN THE 2884 01:45:11,960 --> 01:45:13,720 FUTURE, OR NOT. 2885 01:45:13,720 --> 01:45:14,800 NEXT SLIDE PLEASE. 2886 01:45:14,800 --> 01:45:17,840 I JUST WANTED TO GO OVER SOME OF 2887 01:45:17,840 --> 01:45:19,600 THE ACTIVITIES. 2888 01:45:19,600 --> 01:45:21,040 I KNOW KATRINA HAS ONLY BEEN 2889 01:45:21,040 --> 01:45:23,560 HERE FIVE MONTHS, AND I'VE BEEN 2890 01:45:23,560 --> 01:45:24,760 HERE SLIGHTLY LONGER BUT I 2891 01:45:24,760 --> 01:45:27,040 WANTED TO HIGHLIGHT THINGS GOING 2892 01:45:27,040 --> 01:45:28,840 ON SINCE I CAME TO NCI, AND SOME 2893 01:45:28,840 --> 01:45:31,040 OF THE WAYS THAT I THINK THAT 2894 01:45:31,040 --> 01:45:32,720 YOU ALL AS ADVOCATES MIGHT HELP 2895 01:45:32,720 --> 01:45:36,280 US DO A BETTER JOB OF MEETING 2896 01:45:36,280 --> 01:45:38,000 THE NEEDS OF RESEARCHERS AND 2897 01:45:38,000 --> 01:45:40,000 INVESTIGATORS IN THIS AREA. 2898 01:45:40,000 --> 01:45:41,000 NEXT SLIDE PLEASE. 2899 01:45:41,000 --> 01:45:44,840 SO WE HAD A MEETING JUST THIS 2900 01:45:44,840 --> 01:45:45,360 FALL. 2901 01:45:45,360 --> 01:45:46,600 ACTUALLY IN DECEMBER. 2902 01:45:46,600 --> 01:45:48,760 ON PEOPLE WITH CANCER WHO ARE 2903 01:45:48,760 --> 01:45:50,920 BEING TREATED IN URGENT AND 2904 01:45:50,920 --> 01:45:52,000 EMERGENCY ROOM SETTINGS. 2905 01:45:52,000 --> 01:45:54,640 AND I FOUND THIS TOPIC AND THE 2906 01:45:54,640 --> 01:45:56,200 MEETING EXTREMELY INTERESTING. 2907 01:45:56,200 --> 01:45:59,960 I REALLY THINK THAT THE URGENT 2908 01:45:59,960 --> 01:46:02,280 CARE AND EMERGENCY ROOM SETTINGS 2909 01:46:02,280 --> 01:46:04,360 HAVE BEEN UNDERSTUDIED WITH 2910 01:46:04,360 --> 01:46:06,800 REGARDS TO CANCER SURVIVORS, AND 2911 01:46:06,800 --> 01:46:08,000 THEY ARE PARTICULARLY IMPORTANT 2912 01:46:08,000 --> 01:46:10,040 FOR PEOPLE WHO LIVE SOME 2913 01:46:10,040 --> 01:46:11,880 DISTANCE FROM THE PLACE THEY ARE 2914 01:46:11,880 --> 01:46:12,200 BEING TREATED. 2915 01:46:12,200 --> 01:46:14,560 OF COURSE, A LOT OF THOSE ARE 2916 01:46:14,560 --> 01:46:19,320 PEOPLE WHO LIVE IN RURAL 2917 01:46:19,320 --> 01:46:19,600 SETTINGS. 2918 01:46:19,600 --> 01:46:22,560 SO WE TALKED TO PEOPLE TREATING 2919 01:46:22,560 --> 01:46:24,960 CANCER SURVIVORS IN NEBRASKA, IN 2920 01:46:24,960 --> 01:46:27,160 KENTUCKY, AND WHERE THEY ARE 2921 01:46:27,160 --> 01:46:29,000 REQUIRED TO PARTNER WITH 2922 01:46:29,000 --> 01:46:30,160 COMMUNITY PROVIDERS, COMMUNITY 2923 01:46:30,160 --> 01:46:31,400 EMERGENCY ROOMS OR URGENT CARE 2924 01:46:31,400 --> 01:46:33,040 CENTERS, BECAUSE IT'S JUST NOT 2925 01:46:33,040 --> 01:46:34,640 POSSIBLE FOR THE PERSON TO COME 2926 01:46:34,640 --> 01:46:36,080 BACK TO THE CANCER CENTER EVERY 2927 01:46:36,080 --> 01:46:38,680 TIME THEY HAVE A MEDICAL NEED. 2928 01:46:38,680 --> 01:46:44,920 AND THERE ARE HUGE CHALLENGES OF 2929 01:46:44,920 --> 01:46:46,560 COMMUNICATION AND PROVIDING GOOD 2930 01:46:46,560 --> 01:46:48,200 CARE TO CANCER SURVIVORS WHO 2931 01:46:48,200 --> 01:46:49,800 HAVE TO SEEK CARE IN EMERGENCY 2932 01:46:49,800 --> 01:46:51,000 ROOM AND URGENT CARE SETTINGS. 2933 01:46:51,000 --> 01:46:53,680 SO THIS IS A FASCINATING TOPIC, 2934 01:46:53,680 --> 01:46:55,360 WE JUST HAVE BEGUN TO DIG INTO 2935 01:46:55,360 --> 01:46:55,600 IT. 2936 01:46:55,600 --> 01:46:58,200 I WOULD LOVE TO TALK ABOUT IT 2937 01:46:58,200 --> 01:46:58,480 MORE. 2938 01:46:58,480 --> 01:47:00,560 NEXT SLIDE PLEASE. 2939 01:47:00,560 --> 01:47:04,600 I ALSO WANTED TO MENTION 2940 01:47:04,600 --> 01:47:07,320 SOMETHING THAT WAS REALLY A 2941 01:47:07,320 --> 01:47:09,000 HIGHLIGHT FROM DR. COLLINS, 2942 01:47:09,000 --> 01:47:11,360 WHICH IS AND WHICH HAS BEEN 2943 01:47:11,360 --> 01:47:12,400 EMPHASIZED DURING THE COVID-19 2944 01:47:12,400 --> 01:47:14,760 PANDEMIC OF COURSE, WE IS THE 2945 01:47:14,760 --> 01:47:15,960 PROBLEM OF MISINFORMATION. 2946 01:47:15,960 --> 01:47:20,200 AND THERE IS A TRANS-NIH 2947 01:47:20,200 --> 01:47:22,080 MISINFORMATION INITIATIVE THAT 2948 01:47:22,080 --> 01:47:24,240 NCI PARTICIPATES IN, AND IT'S 2949 01:47:24,240 --> 01:47:26,480 ESPECIALLY RELEVANT I THINK FOR 2950 01:47:26,480 --> 01:47:28,560 CANCER SURVIVORS WHO HAD A LOT 2951 01:47:28,560 --> 01:47:31,600 OF FEAR AND UNCERTAINTY AROUND 2952 01:47:31,600 --> 01:47:33,360 THE COVID PANDEMIC, WHO 2953 01:47:33,360 --> 01:47:34,520 DEMONSTRATED THAT THEY DID NOT 2954 01:47:34,520 --> 01:47:38,120 WANT TO COME IN FOR THEIR 2955 01:47:38,120 --> 01:47:38,800 LONG-TERM FOLLOW-UP 2956 01:47:38,800 --> 01:47:40,520 APPOINTMENTS, AND WHO I THINK WE 2957 01:47:40,520 --> 01:47:43,000 ARE STILL ONLY BEGINNING TO 2958 01:47:43,000 --> 01:47:44,560 UNDERSTAND WHAT THE IMPACT OF 2959 01:47:44,560 --> 01:47:46,960 THE COVID-19 PANDEMIC HAS BEEN 2960 01:47:46,960 --> 01:47:48,760 ON THIS POPULATION IN 2961 01:47:48,760 --> 01:47:49,200 PARTICULAR. 2962 01:47:49,200 --> 01:47:50,560 WHEN YOU THINK ABOUT WHAT WE'VE 2963 01:47:50,560 --> 01:47:53,000 SEEN SO FAR AND WHAT DR. 2964 01:47:53,000 --> 01:47:55,120 SHARPLESS WAS POINTING TO, 2965 01:47:55,120 --> 01:47:56,360 THERE'S BEEN SOME EMERGING 2966 01:47:56,360 --> 01:47:58,000 EVIDENCE ABOUT A POTENTIAL 2967 01:47:58,000 --> 01:47:59,200 IMPACT FOR MISSING CANCER 2968 01:47:59,200 --> 01:48:00,080 SCREENINGS BUT WE REALLY DON'T 2969 01:48:00,080 --> 01:48:01,800 KNOW WHAT MAY HAVE HAPPENED TO 2970 01:48:01,800 --> 01:48:05,200 CANCER SURVIVORS WHO WERE NOT 2971 01:48:05,200 --> 01:48:07,360 COMING FOR THEIR NECESSARY 2972 01:48:07,360 --> 01:48:08,120 SURVEILLANCE OR LONG-TERM 2973 01:48:08,120 --> 01:48:09,360 FOLLOW-UP APPOINTMENTS. 2974 01:48:09,360 --> 01:48:10,440 THIS IS AN AREA I'M CONCERNED 2975 01:48:10,440 --> 01:48:11,640 ABOUT AND I THINK MISINFORMATION 2976 01:48:11,640 --> 01:48:12,600 PLAYED A BIG PART HERE. 2977 01:48:12,600 --> 01:48:15,720 THERE WAS A PAPER THAT CAME OUT 2978 01:48:15,720 --> 01:48:18,720 IN JCO ABOUT CHILDHOOD CANCER 2979 01:48:18,720 --> 01:48:20,240 SURVIVORS WHEREs PAUL NATHAN 2980 01:48:20,240 --> 01:48:22,400 LED SOME WORK ON SURVIVORS WHO 2981 01:48:22,400 --> 01:48:25,480 LIVE IN THE PROVINCE OF ONTARIO 2982 01:48:25,480 --> 01:48:28,880 IN CANADA, AND THEIR RESULTS 2983 01:48:28,880 --> 01:48:31,600 SUGGESTED THERE WAS NO 2984 01:48:31,600 --> 01:48:32,600 DIFFERENCE IN COVID-RELATED 2985 01:48:32,600 --> 01:48:35,600 EMERGENCY ROOM VISITS OR 2986 01:48:35,600 --> 01:48:37,920 HOSPITALIZATIONS COMPARED TO THE 2987 01:48:37,920 --> 01:48:38,560 GENERAL POPULATION, REASSURING 2988 01:48:38,560 --> 01:48:39,640 FOR MANY PEOPLE. 2989 01:48:39,640 --> 01:48:42,080 I HOPE WE SEE MORE RESULTS COME 2990 01:48:42,080 --> 01:48:45,240 OUT LIKE THAT, THAT WILL 2991 01:48:45,240 --> 01:48:47,000 ENCOURAGE SURVIVORS TO GET 2992 01:48:47,000 --> 01:48:48,640 NECESSARY CARE AND THAT WE CAN 2993 01:48:48,640 --> 01:48:49,440 COMBAT MISINFORMATION IN OTHER 2994 01:48:49,440 --> 01:48:51,480 WAYS BUT THIS IS CLEARLY AN AREA 2995 01:48:51,480 --> 01:48:53,520 WHERE WE HAVE A LOT OF WORK TO 2996 01:48:53,520 --> 01:48:53,680 DO. 2997 01:48:53,680 --> 01:48:56,400 NEXT SLIDE PLEASE. 2998 01:48:56,400 --> 01:48:58,720 I ALSO WANTED TO JUST -- YOU'VE 2999 01:48:58,720 --> 01:49:01,320 PROBABLY HEARD ABOUT THIS 3000 01:49:01,320 --> 01:49:02,200 INITIATIVE BEFORE, BRIEFLY 3001 01:49:02,200 --> 01:49:03,840 POINTING TO TOBACCO AS ONE OF 3002 01:49:03,840 --> 01:49:06,160 THE HEALTH BEHAVIORS IN CANCER 3003 01:49:06,160 --> 01:49:13,280 SURVIVORS THAT DEFINITELY NEEDS 3004 01:49:13,280 --> 01:49:16,600 MORE ATTENTION AND MORE WORK. 3005 01:49:16,600 --> 01:49:17,960 BEHAVIORS ARE MORE COMPLICATED 3006 01:49:17,960 --> 01:49:19,200 THAN WE MIGHT HAVE EXPECTED, 3007 01:49:19,200 --> 01:49:20,800 UNDERSTANDING HOW TO ENCOURAGE 3008 01:49:20,800 --> 01:49:23,400 PEOPLE TO MAKE GOOD CHOICES 3009 01:49:23,400 --> 01:49:26,360 AFTER A DIAGNOSIS OF CANCER 3010 01:49:26,360 --> 01:49:34,360 REALLY DOES REQUIRE MORE 3011 01:49:34,360 --> 01:49:34,640 RESEARCH. 3012 01:49:34,640 --> 01:49:41,000 I WANTED TO MENTION SOMETHING 3013 01:49:41,000 --> 01:49:41,720 YOU'VE HEARD ABOUT BEFORE, I'M 3014 01:49:41,720 --> 01:49:43,040 HAPPY TO TALK MORE ABOUT THE 3015 01:49:43,040 --> 01:49:43,880 IDEA. 3016 01:49:43,880 --> 01:49:49,600 WE KNOW THERE ARE A LOT OF 3017 01:49:49,600 --> 01:49:51,240 CANCER SURVIVORS WHO PARTICIPATE 3018 01:49:51,240 --> 01:49:55,200 IN CLINICAL TRIALS INTERESTED IN 3019 01:49:55,200 --> 01:49:57,080 PARTICIPATING IN LONG-TERM 3020 01:49:57,080 --> 01:49:58,440 FOLLOW-UP AFTER THE TREATMENT 3021 01:49:58,440 --> 01:50:00,200 OTHER TRIAL ENDED, IT'S NOT EASY 3022 01:50:00,200 --> 01:50:02,480 TO ACCESS THOSE POPULATIONS. 3023 01:50:02,480 --> 01:50:07,600 IN 2019 AT THE RECOMMENDATION OF 3024 01:50:07,600 --> 01:50:10,840 THE BOARD OF SCIENTIFIC ADVISORS 3025 01:50:10,840 --> 01:50:14,080 DCCPS PUT OUT THIS REQUEST FOR 3026 01:50:14,080 --> 01:50:17,200 INFORMATION ON -- I'M SORRY, 3027 01:50:17,200 --> 01:50:18,400 NCATS, THAT'S MY -- I APOLOGIZE, 3028 01:50:18,400 --> 01:50:21,760 IT'S RIGHT THERE ON THE SLIDE. 3029 01:50:21,760 --> 01:50:24,320 RECOMMENDED WE START TO LOOK 3030 01:50:24,320 --> 01:50:25,560 INTO HOW TO LEVERAGE CLINICAL 3031 01:50:25,560 --> 01:50:27,640 TRIALS POPULATIONS, PUT OUT AN 3032 01:50:27,640 --> 01:50:32,880 RFI IN 2021, STILL WORKING ON 3033 01:50:32,880 --> 01:50:34,480 GOING THROUGH WHAT THE CLINICAL 3034 01:50:34,480 --> 01:50:35,920 TRIAL COOPERATIVE GROUPS HAD TO 3035 01:50:35,920 --> 01:50:36,920 SAY, INDIVIDUAL INVESTIGATORS 3036 01:50:36,920 --> 01:50:38,760 WHO WERE DOING THIS KIND OF 3037 01:50:38,760 --> 01:50:39,080 WORK. 3038 01:50:39,080 --> 01:50:42,120 BUT I THINK THERE'S CLEARLY AN 3039 01:50:42,120 --> 01:50:43,920 INTEREST IN TAKING POPULATIONS 3040 01:50:43,920 --> 01:50:45,120 OF PEOPLE WHO HAVE BEEN -- 3041 01:50:45,120 --> 01:50:46,360 PARTICIPATED IN CLINICAL TRIALS 3042 01:50:46,360 --> 01:50:48,400 AND FINDING WAYS TO INCLUDE THEM 3043 01:50:48,400 --> 01:50:49,880 IN LONG-TERM FOLLOW-UP FOR 3044 01:50:49,880 --> 01:50:52,360 SURVIVORSHIP RESEARCH. 3045 01:50:52,360 --> 01:50:53,440 NEXT SLIDE PLEASE. 3046 01:50:53,440 --> 01:50:55,000 I ALSO WANTED TO MENTION 3047 01:50:55,000 --> 01:50:57,080 FINANCIAL HARDSHIP. 3048 01:50:57,080 --> 01:50:59,120 THIS IS AN AREA OF TREMENDOUS 3049 01:50:59,120 --> 01:51:01,680 IMPORTANCE FOR CANCER SURVIVORS 3050 01:51:01,680 --> 01:51:04,080 AND OF COURSE HAS ALSO BEEN 3051 01:51:04,080 --> 01:51:05,800 IMPACTED BY THE COVID PANDEMIC. 3052 01:51:05,800 --> 01:51:08,600 LAST YEAR WE HAD SOME 3053 01:51:08,600 --> 01:51:11,920 SUPPLEMENTS TO THE CANCER 3054 01:51:11,920 --> 01:51:13,120 CENTERS ON FINANCIAL HARDSHIPS, 3055 01:51:13,120 --> 01:51:15,880 THERE WERE 11 CANCER CENTERS 3056 01:51:15,880 --> 01:51:17,200 SUPPLEMENTED, AND WE'RE HAPPY TO 3057 01:51:17,200 --> 01:51:18,720 SEE SOME RESULTS NOT ONLY FROM 3058 01:51:18,720 --> 01:51:22,120 THAT RESEARCH BUT IN TERMS OF 3059 01:51:22,120 --> 01:51:23,320 SPURRING ADDITIONAL APPLICATIONS 3060 01:51:23,320 --> 01:51:26,720 AND ADDITIONAL PROJECTS IN THIS 3061 01:51:26,720 --> 01:51:26,920 AREA. 3062 01:51:26,920 --> 01:51:27,800 NEXT SLIDE PLEASE. 3063 01:51:27,800 --> 01:51:30,640 THERE'S ALSO SOMETHING ON THE 3064 01:51:30,640 --> 01:51:32,480 HORIZON WHICH IS A SURVIVOR 3065 01:51:32,480 --> 01:51:34,760 SAMPLE FROM THE HEALTH 3066 01:51:34,760 --> 01:51:35,760 INFORMATION NATIONAL TREND 3067 01:51:35,760 --> 01:51:37,920 SURVEY, THIS IS GOING TO BE 3068 01:51:37,920 --> 01:51:39,000 REALLY FASCINATING DATA. 3069 01:51:39,000 --> 01:51:42,040 WHAT IS GOING ON RIGHT NOW IS 3070 01:51:42,040 --> 01:51:43,600 THAT THERE IS -- THERE ARE 3071 01:51:43,600 --> 01:51:45,120 POPULATION OF SURVIVORS WHO WERE 3072 01:51:45,120 --> 01:51:47,560 LINKED TO THEIR SEER REGISTRY 3073 01:51:47,560 --> 01:51:50,200 DATA, WHO ARE BEING ASKED 3074 01:51:50,200 --> 01:51:52,240 QUESTIONS ABOUT THEIR 3075 01:51:52,240 --> 01:51:53,560 INFORMATION SEEKING, INTERNET 3076 01:51:53,560 --> 01:51:55,960 USE, SOME THINGS ABOUT COVID, 3077 01:51:55,960 --> 01:51:57,920 HEALTH BEHAVIORS AND HEALTH CARE 3078 01:51:57,920 --> 01:51:59,760 UTILIZATION, THEY ARE ALSO BEING 3079 01:51:59,760 --> 01:52:00,960 ASKED QUESTIONS ABOUT SIDE 3080 01:52:00,960 --> 01:52:02,320 EFFECTS FROM TREATMENT, RETURN 3081 01:52:02,320 --> 01:52:03,760 TO WORK, AND OF COURSE BECAUSE 3082 01:52:03,760 --> 01:52:07,080 THEY ARE LINKED TO SEER REGISTRY 3083 01:52:07,080 --> 01:52:08,400 DATA WILL HAVE PRIMARY CANCER 3084 01:52:08,400 --> 01:52:11,360 SITE HISTOLOGY AND DATE OF 3085 01:52:11,360 --> 01:52:11,800 DIAGNOSIS. 3086 01:52:11,800 --> 01:52:14,520 WHEN THIS DATA IS AVAILABLE IT 3087 01:52:14,520 --> 01:52:16,280 WILL BE UNDER RESTRICTED ACCESS, 3088 01:52:16,280 --> 01:52:17,800 SO INVESTIGATORS WILL HAVE TO 3089 01:52:17,800 --> 01:52:21,760 SPECIFICALLY APPLY TO BE ABLE TO 3090 01:52:21,760 --> 01:52:22,720 USE IT. 3091 01:52:22,720 --> 01:52:25,920 IT'S GOING TO I THINK DEEPEN OUR 3092 01:52:25,920 --> 01:52:27,320 UNDERSTANDING OF INFORMATION AND 3093 01:52:27,320 --> 01:52:28,800 WHERE SURVIVORS ARE GETTING 3094 01:52:28,800 --> 01:52:30,200 INFORMATION AND HOW THAT RELATES 3095 01:52:30,200 --> 01:52:32,440 TO COVID-19 AND OTHER BEHAVIORS 3096 01:52:32,440 --> 01:52:33,640 THEY ARE UNDERTAKING. 3097 01:52:33,640 --> 01:52:39,120 I'M REALLY LOOKING FORWARD TO 3098 01:52:39,120 --> 01:52:39,560 THIS DATA. 3099 01:52:39,560 --> 01:52:41,880 YOU KNOW ABOUT THE CHILDHOOD 3100 01:52:41,880 --> 01:52:43,480 CANCER SURVIVOR STAR ACT. 3101 01:52:43,480 --> 01:52:48,360 THERE WERE THREE REPORTS THAT I 3102 01:52:48,360 --> 01:52:49,080 PARTICIPATED IN THAT WERE FUNDED 3103 01:52:49,080 --> 01:52:51,080 THROUGH THE STAR ACT. 3104 01:52:51,080 --> 01:52:53,560 FIRST WAS ON TRANSITIONS. 3105 01:52:53,560 --> 01:52:56,000 THIS MEANS CHILDREN WHO ARE 3106 01:52:56,000 --> 01:52:58,840 TRANSITIONING TO ADULT STYLE OR 3107 01:52:58,840 --> 01:53:00,120 ADULT-BASED CARE, SECOND WAS ON 3108 01:53:00,120 --> 01:53:01,880 CARE MODELS THAT INCLUDE PRIMARY 3109 01:53:01,880 --> 01:53:03,960 CARE PROVIDERS, AND THE THIRD 3110 01:53:03,960 --> 01:53:05,960 WAS ON DISPARITIES AND BARRIERS 3111 01:53:05,960 --> 01:53:07,120 TO LONG-TERM FOLLOW-UP FOR 3112 01:53:07,120 --> 01:53:08,200 CHILDHOOD CANCERS SURVIVORS. 3113 01:53:08,200 --> 01:53:10,840 THE THIRD ONE CAME OUT FIRST. 3114 01:53:10,840 --> 01:53:11,920 NEXT SLIDE PLEASE. 3115 01:53:11,920 --> 01:53:15,000 AND WHAT WE LEARNED FROM THAT 3116 01:53:15,000 --> 01:53:16,640 TECHNICAL BRIEF IS THAT THERE 3117 01:53:16,640 --> 01:53:18,400 ARE VERY FEW STUDIES ON 3118 01:53:18,400 --> 01:53:19,400 ORGANIZATIONAL OR HIGHER LEVEL 3119 01:53:19,400 --> 01:53:21,680 BARRIERS THAT MIGHT BE KEEPING 3120 01:53:21,680 --> 01:53:23,800 CHILDHOOD CANCER SURVIVORS FROM 3121 01:53:23,800 --> 01:53:24,960 PARTICIPATING IN LONG-TERM 3122 01:53:24,960 --> 01:53:25,440 FOLLOW-UP. 3123 01:53:25,440 --> 01:53:29,440 WHAT THEY DESCRIBE IN THAT 3124 01:53:29,440 --> 01:53:31,880 TECHNICAL BRIEF AHRQ A NUMBER OF 3125 01:53:31,880 --> 01:53:33,000 STUDIES LOOK AT SURVIVOR 3126 01:53:33,000 --> 01:53:34,160 KNOWLEDGE SO DOES THE SURVIVOR 3127 01:53:34,160 --> 01:53:35,880 KNOW THAT THEY ARE SUPPOSED TO 3128 01:53:35,880 --> 01:53:38,520 BE COMING BACK FOR SURVEILLANCE 3129 01:53:38,520 --> 01:53:38,840 TESTING? 3130 01:53:38,840 --> 01:53:41,320 AND ALSO PROVIDER KNOWLEDGE, DO 3131 01:53:41,320 --> 01:53:42,120 PRIMARY CARE PROVIDERS REALIZE 3132 01:53:42,120 --> 01:53:44,000 THAT THEY ARE SUPPOSED TO BE 3133 01:53:44,000 --> 01:53:45,160 REFERRING CHILDHOOD CANCER 3134 01:53:45,160 --> 01:53:47,600 SURVIVORS FOR SPECIFIC KINDS OF 3135 01:53:47,600 --> 01:53:48,040 SERVICES? 3136 01:53:48,040 --> 01:53:50,800 THERE ISN'T ANYTHING OUT THERE 3137 01:53:50,800 --> 01:53:53,440 THAT'S TRYING TO INTERVENE AT 3138 01:53:53,440 --> 01:53:54,480 THE HIGHER LEVELS, MEANING 3139 01:53:54,480 --> 01:53:55,240 ORGANIZATIONAL LEVEL OR 3140 01:53:55,240 --> 01:53:58,000 COMMUNITY LEVEL OR MAYBE EVEN 3141 01:53:58,000 --> 01:54:00,800 THE POLICY LEVEL, SO WE PUT OUT 3142 01:54:00,800 --> 01:54:03,120 THIS CALL FOR CANCER CENTER 3143 01:54:03,120 --> 01:54:05,360 SUPPLEMENTS ON ORGANIZATIONAL 3144 01:54:05,360 --> 01:54:06,600 BARRIERS TO CHILDHOOD CANCER 3145 01:54:06,600 --> 01:54:07,960 SURVIVORSHIP CARE AND GOT 30 3146 01:54:07,960 --> 01:54:08,400 APPLICATIONS. 3147 01:54:08,400 --> 01:54:10,200 WHEN WE TALK ABOUT 3148 01:54:10,200 --> 01:54:11,640 ORGANIZATIONAL BARRIERS THAT 3149 01:54:11,640 --> 01:54:14,720 MEANS POLICIES AND PROCEDURES, 3150 01:54:14,720 --> 01:54:16,360 CULTURE, RESOURCES, TEAMS, 3151 01:54:16,360 --> 01:54:17,800 WORKFLOW, SPACE, STAFFING 3152 01:54:17,800 --> 01:54:18,760 EXPERTISE, AND HOURS. 3153 01:54:18,760 --> 01:54:20,200 FOR EXAMPLE, IF YOU HAVE A 3154 01:54:20,200 --> 01:54:22,800 REQUIREMENT THAT YOU CAN'T GET A 3155 01:54:22,800 --> 01:54:24,000 MAMMOGRAM AND BREAST MRI ON THE 3156 01:54:24,000 --> 01:54:25,880 SAME DAY IT'S AN ORGANIZATIONAL 3157 01:54:25,880 --> 01:54:29,360 BARRIER THAT WILL LEAD TO FEWER 3158 01:54:29,360 --> 01:54:30,200 SURVIVORS GETTING NECESSARY 3159 01:54:30,200 --> 01:54:31,200 SURVEILLANCE TESTING. 3160 01:54:31,200 --> 01:54:33,760 IF YOU HAVE -- THAT COULD BE AN 3161 01:54:33,760 --> 01:54:36,040 ORGANIZATIONAL POLICY. 3162 01:54:36,040 --> 01:54:41,160 THERE COULD BE A CULTURE WHERE 3163 01:54:41,160 --> 01:54:41,840 PEDIATRICIANS ARE FOLLOWING 3164 01:54:41,840 --> 01:54:42,800 CHILDHOOD CANCER SURVIVORS 3165 01:54:42,800 --> 01:54:45,280 THROUGH THE LIFESPAN THAT'S NOT 3166 01:54:45,280 --> 01:54:46,160 PROVIDING APPROPRIATE RISK-BASED 3167 01:54:46,160 --> 01:54:47,440 CARE FOR SURVIVORS SO THAT COULD 3168 01:54:47,440 --> 01:54:51,240 BE A WAY THE CULTURE IS 3169 01:54:51,240 --> 01:54:53,520 CONTRIBUTING TO A LACK EVER 3170 01:54:53,520 --> 01:54:54,880 FOLLOW-UP FOR CHILDHOOD CANCER 3171 01:54:54,880 --> 01:54:55,160 SURVIVORS. 3172 01:54:55,160 --> 01:54:56,200 NEXT SLIDE PLEASE. 3173 01:54:56,200 --> 01:54:57,560 WE GOT THERE ANYWAY. 3174 01:54:57,560 --> 01:55:00,200 I THOUGHT I HAD ANOTHER SLIDE. 3175 01:55:00,200 --> 01:55:02,720 WE GOT 30 APPLICATIONS, AWARDED 3176 01:55:02,720 --> 01:55:04,560 7, JUST HAD A MEETING WITH 3177 01:55:04,560 --> 01:55:06,440 INVESTIGATORS AND I'M LOOKING 3178 01:55:06,440 --> 01:55:08,400 FORWARD TO SEEING HOW 3179 01:55:08,400 --> 01:55:10,880 SUPPLEMENTS ARE LEVERAGES FOR 3180 01:55:10,880 --> 01:55:12,760 BIGGER STUDIES OR INTERVENTIONS 3181 01:55:12,760 --> 01:55:14,200 ON ORGANIZATIONAL BARRIERS. 3182 01:55:14,200 --> 01:55:17,120 THE OTHER THING WE DID AFTER 3183 01:55:17,120 --> 01:55:19,400 THOSE SUPPLEMENTS CAME IN WAS TO 3184 01:55:19,400 --> 01:55:21,640 PUT OUT A NOTICE OF SPECIAL 3185 01:55:21,640 --> 01:55:23,480 INTEREST, AND IN THE NOTICE OF 3186 01:55:23,480 --> 01:55:25,160 SPECIAL INTEREST WE'RE 3187 01:55:25,160 --> 01:55:26,440 SPECIFICALLY CALLING OUT 3188 01:55:26,440 --> 01:55:27,640 DISPARITIES AFFECTING HEALTH 3189 01:55:27,640 --> 01:55:32,920 CARE UTILIZATION AND HEALTH 3190 01:55:32,920 --> 01:55:35,280 OUTCOMES, AMONG CHILDHOOD CANCER 3191 01:55:35,280 --> 01:55:35,960 SURVIVORS, WE'RE LOOKING FOR 3192 01:55:35,960 --> 01:55:38,200 STUDIES TO ADDRESS THE FULL 3193 01:55:38,200 --> 01:55:40,480 SPECTRUM OF FACTORS THAT 3194 01:55:40,480 --> 01:55:42,400 CONTRIBUTE TO DISPARITIES AND 3195 01:55:42,400 --> 01:55:46,680 SURVIVORSHIP CARE, HEALTH CARE 3196 01:55:46,680 --> 01:55:48,680 UTILIZATION AND OUTCOMES, THE 3197 01:55:48,680 --> 01:55:52,040 TEAM, COMMUNITY, SYSTEM, PAYER, 3198 01:55:52,040 --> 01:55:52,480 POLICY. 3199 01:55:52,480 --> 01:55:56,120 THIS CAME OUT IN MARCH, THIS 3200 01:55:56,120 --> 01:55:58,960 MONTH, OPEN FOR TWO YEARS. 3201 01:55:58,960 --> 01:56:02,400 WE'RE STARTING TO GET CALLS FROM 3202 01:56:02,400 --> 01:56:04,520 INVESTIGATORS SO I'M EXCITED. 3203 01:56:04,520 --> 01:56:05,760 NEXT SLIDE PLEASE. 3204 01:56:05,760 --> 01:56:08,440 WE ALSO ARE GROWING AS AN 3205 01:56:08,440 --> 01:56:09,160 OFFICE. 3206 01:56:09,160 --> 01:56:15,800 WE WELCOMED JUST LAST MONTH DR. 3207 01:56:15,800 --> 01:56:17,080 MICHELE MOLLICA, SHE'S BEEN HERE 3208 01:56:17,080 --> 01:56:19,480 FOR A NUMBER OF YEARS AS A 3209 01:56:19,480 --> 01:56:20,480 PROGRAM DIRECTOR. 3210 01:56:20,480 --> 01:56:21,960 I'M REALLY LOOKING FORWARD TO 3211 01:56:21,960 --> 01:56:24,560 HOW SHE'S GOING TO EXPAND OUR 3212 01:56:24,560 --> 01:56:27,200 REACH AND BRING A WHOLE 3213 01:56:27,200 --> 01:56:29,680 DIFFERENT TYPE OF EXPERTISE TO 3214 01:56:29,680 --> 01:56:31,320 THE OFFICE. 3215 01:56:31,320 --> 01:56:32,640 NEXT SLIDE PLEASE. 3216 01:56:32,640 --> 01:56:35,440 WE ALSO ARE WORKING ON SOME NEW 3217 01:56:35,440 --> 01:56:37,360 WAYS TO SUPPORT SURVIVORSHIP 3218 01:56:37,360 --> 01:56:38,200 INVESTIGATORS, WE'RE EXTENDING 3219 01:56:38,200 --> 01:56:40,800 THE REACH OF OUR NEW R01 MEETING 3220 01:56:40,800 --> 01:56:43,600 TO HAVE ONGOING FOLLOW-UP WITH 3221 01:56:43,600 --> 01:56:45,000 OUR NEWLY FUNDED INVESTIGATORS. 3222 01:56:45,000 --> 01:56:47,720 WE ARE REALLY TRYING TO FOCUS ON 3223 01:56:47,720 --> 01:56:49,120 BUILDING A CAREER IN 3224 01:56:49,120 --> 01:56:50,560 SURVIVORSHIP SCIENCE. 3225 01:56:50,560 --> 01:56:53,480 IN THOSE MEETINGS WE'RE HAVING 3226 01:56:53,480 --> 01:56:55,760 SHORT TALKS FROM SUCCESSFUL 3227 01:56:55,760 --> 01:56:56,440 SURVIVORSHIP INVESTIGATORS THAT 3228 01:56:56,440 --> 01:56:59,960 WE'RE GOING TO RECORD IN HOPES 3229 01:56:59,960 --> 01:57:02,120 OF BUILDING A LIBRARY OF 15- TO 3230 01:57:02,120 --> 01:57:03,240 20-MINUTE TALKS THAT PEOPLE WHO 3231 01:57:03,240 --> 01:57:05,520 ARE TRYING TO BUILD A CAREER IN 3232 01:57:05,520 --> 01:57:06,600 SURVIVORSHIP RESEARCH COULD GO 3233 01:57:06,600 --> 01:57:08,240 TO THIS LIBRARY AND LISTEN TO 3234 01:57:08,240 --> 01:57:10,000 SOME TALKS FROM DIFFERENT TIMES 3235 01:57:10,000 --> 01:57:11,640 OF INVESTIGATORS ABOUT HOW THEY 3236 01:57:11,640 --> 01:57:13,680 HAVE MANAGED TO BUILD SUCCESSFUL 3237 01:57:13,680 --> 01:57:16,000 CAREERS IN THIS FIELD. 3238 01:57:16,000 --> 01:57:17,640 NEXT SLIDE PLEASE. 3239 01:57:17,640 --> 01:57:20,040 WE ALSO HAVE STARTED AN OFFICE 3240 01:57:20,040 --> 01:57:21,400 OF CANCER SURVIVORSHIP DIRECTOR 3241 01:57:21,400 --> 01:57:21,920 SERIES. 3242 01:57:21,920 --> 01:57:24,600 LAST MONTH WE HAD SIMON ROSSER 3243 01:57:24,600 --> 01:57:27,840 WHO GAVE A TALK ABOUT SEXUAL AND 3244 01:57:27,840 --> 01:57:30,000 GENDER MINORITY PROSTATE CANCER 3245 01:57:30,000 --> 01:57:30,360 SURVIVORS. 3246 01:57:30,360 --> 01:57:32,160 IF IT'S NOT -- IF RECORDED TALK 3247 01:57:32,160 --> 01:57:33,400 IS NOT AVAILABLE YET, IT WILL BE 3248 01:57:33,400 --> 01:57:38,440 VERY SOON ON THE OCS WEBSITE. 3249 01:57:38,440 --> 01:57:40,800 NEXT SLIDE. 3250 01:57:40,800 --> 01:57:42,760 THIS MONTH WE'RE HAVING DR. 3251 01:57:42,760 --> 01:57:44,320 SINGH, WHO IS GOING TO SPEAK 3252 01:57:44,320 --> 01:57:46,520 ABOUT USING TECHNOLOGY TO 3253 01:57:46,520 --> 01:57:48,000 IMPROVE SUPPORTIVE CARE FOR 3254 01:57:48,000 --> 01:57:50,840 CANCER SURVIVORS AND FAMILY 3255 01:57:50,840 --> 01:57:51,160 CAREGIVERS. 3256 01:57:51,160 --> 01:57:53,400 THIS TALK IS IN PARTNERSHIP WITH 3257 01:57:53,400 --> 01:57:55,160 THE NATIONAL INSTITUTE FOR 3258 01:57:55,160 --> 01:57:57,000 NURSING RESEARCH, IN JANUARY WE 3259 01:57:57,000 --> 01:58:01,920 HAD A TALK FROM DR. STEPHEN 3260 01:58:01,920 --> 01:58:03,760 KAMANI FROM UTAH WHO SPOKE ABOUT 3261 01:58:03,760 --> 01:58:07,400 DISPARITIES AND BARRIERS TO CARE 3262 01:58:07,400 --> 01:58:08,520 IN MALAWI IN PARTNERSHIP WITH 3263 01:58:08,520 --> 01:58:09,600 CENTER FOR GLOBAL HEALTH. 3264 01:58:09,600 --> 01:58:10,760 MOST TALKS ARE IN PARTNERSHIP 3265 01:58:10,760 --> 01:58:13,520 WITH ANOTHER GROUP FROM THE NIH 3266 01:58:13,520 --> 01:58:15,720 IN ORDER TOP TRY TO HIGHLIGHT 3267 01:58:15,720 --> 01:58:16,680 SURVIVORSHIP RESEARCH THAT'S 3268 01:58:16,680 --> 01:58:18,400 GOING ON AT OTHER I.C.s OR IN 3269 01:58:18,400 --> 01:58:22,520 OTHER PLACES WITHIN THE NCI. 3270 01:58:22,520 --> 01:58:23,440 NEXT SLIDE PLEASE. 3271 01:58:23,440 --> 01:58:23,680 OKAY. 3272 01:58:23,680 --> 01:58:28,400 THE LAST THING I WANT TO DO IS 3273 01:58:28,400 --> 01:58:29,920 JUST QUOTE OUR OWN DR. SHARPLESS 3274 01:58:29,920 --> 01:58:31,640 ON HOW WE MIGHT END CANCER AS WE 3275 01:58:31,640 --> 01:58:32,280 KNOW IT. 3276 01:58:32,280 --> 01:58:34,360 HE SAID, WHAT ARE WE WORKING 3277 01:58:34,360 --> 01:58:34,600 TOWARD? 3278 01:58:34,600 --> 01:58:36,000 IF WE'RE BUILDING A BRIDGE TO 3279 01:58:36,000 --> 01:58:36,840 THE FUTURE OF CANCER WHAT'S ON 3280 01:58:36,840 --> 01:58:38,600 THE OTHER SIDE OF THAT BRIDGE? 3281 01:58:38,600 --> 01:58:40,360 A WORLD WHERE WE WILL HAVE 3282 01:58:40,360 --> 01:58:41,640 CHANGED CANCER AS WE KNOW IT. 3283 01:58:41,640 --> 01:58:42,840 AND I THINK THAT FUTURE IS 3284 01:58:42,840 --> 01:58:44,000 WITHIN OUR REACH. 3285 01:58:44,000 --> 01:58:45,520 LET'S FOCUS ON A FUTURE WHERE 3286 01:58:45,520 --> 01:58:48,000 ALL PEOPLE WITH CANCER HAVE THE 3287 01:58:48,000 --> 01:58:49,600 SUPPORT AND RESOURCES NEEDED TO 3288 01:58:49,600 --> 01:58:52,160 NAVIGATE THEIR CARE. 3289 01:58:52,160 --> 01:58:54,600 3290 01:58:54,600 --> 01:58:57,000 NEXT SLIDE PLEASE. 3291 01:58:57,000 --> 01:58:58,280 THANK YOU. 3292 01:58:58,280 --> 01:58:59,960 >> EXCELLENT. 3293 01:58:59,960 --> 01:59:00,440 EXCELLENT PRESENTATION. 3294 01:59:00,440 --> 01:59:02,200 CLEARLY YOU HAVE YOUR HANDS 3295 01:59:02,200 --> 01:59:02,400 FULL. 3296 01:59:02,400 --> 01:59:03,960 THERE'S QUITE A BIT THAT YOU 3297 01:59:03,960 --> 01:59:06,360 COVERED IN A VERY SHORT AMOUNT 3298 01:59:06,360 --> 01:59:08,120 OF TIME. 3299 01:59:08,120 --> 01:59:12,240 KATRINA AND YOU BOTH HAVE A LOT 3300 01:59:12,240 --> 01:59:12,520 TO MANAGE. 3301 01:59:12,520 --> 01:59:15,000 SO, THAT WAS A GREAT 3302 01:59:15,000 --> 01:59:15,400 PRESENTATION. 3303 01:59:15,400 --> 01:59:16,640 WE'RE EXCITED TO HEAR ABOUT THE 3304 01:59:16,640 --> 01:59:20,240 WORK THAT YOU'RE DOING IN 3305 01:59:20,240 --> 01:59:20,600 SURVIVORSHIP. 3306 01:59:20,600 --> 01:59:21,920 I CAN TURN IT TO QUESTIONS, I 3307 01:59:21,920 --> 01:59:23,200 CAN KICK IT OFF. 3308 01:59:23,200 --> 01:59:37,200 LET ME SEE IF ANYBODY HAS ANY 3309 01:59:37,200 --> 01:59:37,600 QUESTIONS FIRST. 3310 01:59:37,600 --> 01:59:39,400 I HAVE A QUESTION ABOUT THE 3311 01:59:39,400 --> 01:59:40,840 SAMPLE PROJECT YOU HAVE. 3312 01:59:40,840 --> 01:59:42,160 IS THAT GROUP THAT YOU'RE 3313 01:59:42,160 --> 01:59:43,440 PULLING, THAT SMALL GROUP OF 3314 01:59:43,440 --> 01:59:44,640 INDIVIDUALS THAT ARE LINKED WITH 3315 01:59:44,640 --> 01:59:47,120 THE SEER DATA, WILL YOU BE ABLE 3316 01:59:47,120 --> 01:59:50,480 TO LOOK AT RACE AND ETHNICITY, 3317 01:59:50,480 --> 01:59:51,960 DID I CATCH THAT? 3318 01:59:51,960 --> 01:59:52,200 >> YES. 3319 01:59:52,200 --> 01:59:53,800 >> CORRECTLY? 3320 01:59:53,800 --> 01:59:54,840 >> DEFINITELY. 3321 01:59:54,840 --> 01:59:56,120 >> IS IT ALSO REPRESENTATIVE OF 3322 01:59:56,120 --> 01:59:58,800 I GUESS ALL THE CANCERS THAT -- 3323 01:59:58,800 --> 02:00:06,920 DID YOU PICK THE SAMPLE LOOKING 3324 02:00:06,920 --> 02:00:08,800 AT SORT OF BROADLY WHAT CANCERS 3325 02:00:08,800 --> 02:00:12,800 WOULD BE INCLUDED OR WILL 3326 02:00:12,800 --> 02:00:19,880 NUTRITION BE INCLUDED IN THAT? 3327 02:00:19,880 --> 02:00:22,520 >> THAT SAMPLE, I HAD EXTRA 3328 02:00:22,520 --> 02:00:25,000 SLIDES AND NEXT TIME I WILL COME 3329 02:00:25,000 --> 02:00:27,720 WITH MY DETAILED SLIDES. 3330 02:00:27,720 --> 02:00:30,600 THAT SEER HINTS -- YOU'RE 3331 02:00:30,600 --> 02:00:32,280 TALKING ABOUT HEALTH INFORMATION 3332 02:00:32,280 --> 02:00:36,800 NATIONAL TREND SURVEY. , A 3333 02:00:36,800 --> 02:00:38,320 SUBSAMPLE OF SURVIVORS THROUGH 3334 02:00:38,320 --> 02:00:39,640 THE SEER REGISTRIES USING THREE 3335 02:00:39,640 --> 02:00:40,400 SEER REGISTRIES WHICH I CAN'T 3336 02:00:40,400 --> 02:00:47,120 REMEMBER OFF THE TOP OF MY HEAD 3337 02:00:47,120 --> 02:00:48,200 WHAT THE THREE ARE. 3338 02:00:48,200 --> 02:00:49,480 THEY ARE REPRESENTATIVE OF 3339 02:00:49,480 --> 02:00:50,640 CANCER TYPES, PEOPLE OF 3340 02:00:50,640 --> 02:00:53,320 DIFFERENT AGES, AND OF COURSE 3341 02:00:53,320 --> 02:00:53,840 DIFFERENT GENDERS. 3342 02:00:53,840 --> 02:00:58,800 BUT THEY ARE NOT -- IT'S ONLY 3343 02:00:58,800 --> 02:00:59,000 THREE. 3344 02:00:59,000 --> 02:01:00,480 IT'S NOT A FULLY REPRESENTATIVE 3345 02:01:00,480 --> 02:01:00,720 SAMPLE. 3346 02:01:00,720 --> 02:01:02,200 THAT SAID, I THINK WE DO EXPECT 3347 02:01:02,200 --> 02:01:09,880 TO GET A LOT OF REALLY GOOD 3348 02:01:09,880 --> 02:01:11,800 INFORMATION FROM THAT SURVEY. 3349 02:01:11,800 --> 02:01:13,400 I DON'T THINK NUTRITION IS 3350 02:01:13,400 --> 02:01:13,800 INCLUDED. 3351 02:01:13,800 --> 02:01:16,000 THERE ARE A FEW WAYS WE GATHER 3352 02:01:16,000 --> 02:01:17,920 INFORMATION ON NUTRITION. THERE 3353 02:01:17,920 --> 02:01:20,240 HAVE BEEN RECENT VERY EXCITING 3354 02:01:20,240 --> 02:01:22,120 STUDIES FUNDED IN NUTRITION IN 3355 02:01:22,120 --> 02:01:28,520 CANCER SURVIVORS, BUT I DON'T 3356 02:01:28,520 --> 02:01:29,640 THINK THAT HINTS SPECIFICALLY 3357 02:01:29,640 --> 02:01:38,040 INCLUDES NUTRITION QUESTIONS. 3358 02:01:38,040 --> 02:01:38,360 >> NICOLE? 3359 02:01:38,360 --> 02:01:40,720 >>> THANK YOU AGAIN FOR THAT 3360 02:01:40,720 --> 02:01:41,320 EXCELLENT PRESENTATION. 3361 02:01:41,320 --> 02:01:42,600 GOING BACK, YOU COVERED A LOT, 3362 02:01:42,600 --> 02:01:45,920 AT THE VERY BEGINNING WHEN YOU 3363 02:01:45,920 --> 02:01:48,360 WERE TALKING ABOUT THE 3364 02:01:48,360 --> 02:01:50,520 SURVIVORSHIP ACTIVITIES, YOU 3365 02:01:50,520 --> 02:01:53,800 WERE MENTIONING THE 3366 02:01:53,800 --> 02:01:54,600 CANCER-RELATED EMERGENCY AND 3367 02:01:54,600 --> 02:01:56,200 URGENT CARE EFFORT. 3368 02:01:56,200 --> 02:01:56,480 >> YES. 3369 02:01:56,480 --> 02:01:59,040 >> I'M REALLY EXCITED TO SEE 3370 02:01:59,040 --> 02:02:01,240 THAT BECAUSE, AS YOU MENTIONED, 3371 02:02:01,240 --> 02:02:03,000 THAT'S AN UNDERSTUDIED AREA. 3372 02:02:03,000 --> 02:02:05,080 IT'S SOMETHING I WORK WITH THE 3373 02:02:05,080 --> 02:02:05,920 AMERICAN BRAIN TUMOR 3374 02:02:05,920 --> 02:02:08,240 ASSOCIATION, IT'S SOMETHING THAT 3375 02:02:08,240 --> 02:02:10,000 WE STRUGGLE WITH FOR PATIENTS 3376 02:02:10,000 --> 02:02:12,840 THAT ARE NEWLY DIAGNOSED WITH 3377 02:02:12,840 --> 02:02:14,600 BRAIN TUMORS BECAUSE A LOT OF 3378 02:02:14,600 --> 02:02:16,320 TIMES THEY PRESENT IN THE E.R. 3379 02:02:16,320 --> 02:02:17,640 WITH A SEIZURE, AND THAT'S WHERE 3380 02:02:17,640 --> 02:02:21,520 THEY FIND OUT THEY HAVE A BRAIN 3381 02:02:21,520 --> 02:02:21,840 TUMOR. 3382 02:02:21,840 --> 02:02:24,200 AND THEY ARE TOLD THEY HAVE A 3383 02:02:24,200 --> 02:02:25,280 BRAIN TUMOR, NEEDS TO COME OUT 3384 02:02:25,280 --> 02:02:28,120 IN 48 HOURS, THEY ARE NOT GIVEN 3385 02:02:28,120 --> 02:02:29,840 INFORMATION ON HOW THEY SHOULD 3386 02:02:29,840 --> 02:02:36,040 GO TO A CENTER THAT HAS 3387 02:02:36,040 --> 02:02:36,600 MULTI-DISCIPLINARY AREA. 3388 02:02:36,600 --> 02:02:45,440 THIS IS A BIG ISSUE. 3389 02:02:45,440 --> 02:02:47,960 IT'S A BIG UNMET NEED IN OUR 3390 02:02:47,960 --> 02:02:48,160 AREA. 3391 02:02:48,160 --> 02:02:53,400 SO I'M GLAD YOU GUYS ARE DOING 3392 02:02:53,400 --> 02:02:54,840 THIS. 3393 02:02:54,840 --> 02:02:55,560 >> WOW. 3394 02:02:55,560 --> 02:02:57,560 SO, DIAGNOSIS OF CANCER, SO THAT 3395 02:02:57,560 --> 02:02:58,440 MEETING SPECIFICALLY IS PEOPLE 3396 02:02:58,440 --> 02:02:59,640 WHO HAVE BEEN DIAGNOSED WITH 3397 02:02:59,640 --> 02:03:03,040 CANCER WHO END UP IN URGENT CARE 3398 02:03:03,040 --> 02:03:05,800 EMERGENCY ROOM SETTINGS. 3399 02:03:05,800 --> 02:03:08,200 BUT THE WHOLE ISSUE OF PEOPLE 3400 02:03:08,200 --> 02:03:11,680 GETTING THEIR CANCER DIAGNOSIS 3401 02:03:11,680 --> 02:03:13,880 IN AN EMERGENCY ROOM IS REALLY 3402 02:03:13,880 --> 02:03:14,800 EXTREMELY IMPORTANT. 3403 02:03:14,800 --> 02:03:17,440 AND I'M VERY GLAD YOU GUYS ARE 3404 02:03:17,440 --> 02:03:19,680 WORKING IN THAT AREA. 3405 02:03:19,680 --> 02:03:22,160 I DO ONE OF THE TYPES OF CANCER 3406 02:03:22,160 --> 02:03:24,400 I CARE FOR IS SURVIVORS OF 3407 02:03:24,400 --> 02:03:27,920 CHILDHOOD BRAIN TUMORS, AND I 3408 02:03:27,920 --> 02:03:32,200 DID WORK YEARS AGO WITH STACIA 3409 02:03:32,200 --> 02:03:34,320 WAGNER ON A BOOKLET THEY GIVE TO 3410 02:03:34,320 --> 02:03:35,800 PEOPLE, FAMILIES WITH NEW 3411 02:03:35,800 --> 02:03:37,080 DIAGNOSES, IT HAS A LOT OF THAT 3412 02:03:37,080 --> 02:03:41,000 TYPE OF INFORMATION IN THERE. 3413 02:03:41,000 --> 02:03:44,400 BUT THAT'S A HUGE CHALLENGE. 3414 02:03:44,400 --> 02:03:47,000 AND I DON'T KNOW OFF THE TOP OF 3415 02:03:47,000 --> 02:03:47,200 MY HEAD. 3416 02:03:47,200 --> 02:03:49,600 THAT'S NOT WHAT THIS MEETING WAS 3417 02:03:49,600 --> 02:03:52,800 SPECIFIC TO WAS DIAGNOSIS. 3418 02:03:52,800 --> 02:03:53,480 BUT, WOW, YEAH. 3419 02:03:53,480 --> 02:03:55,200 >> I THOUGHT IT MIGHT BE OUTSIDE 3420 02:03:55,200 --> 02:03:56,400 THE SCOPE BUT SOMETHING -- WE 3421 02:03:56,400 --> 02:03:58,960 DON'T KNOW HOW TO GET TO THOSE 3422 02:03:58,960 --> 02:04:01,120 PATIENTS AT THE TIME THAT THEY 3423 02:04:01,120 --> 02:04:03,600 ARE DIAGNOSED TO GIVE THEM THE 3424 02:04:03,600 --> 02:04:05,280 INFORMATION THEY NEED. 3425 02:04:05,280 --> 02:04:06,680 AND ANYWAY, I'M GLAD YOU ARE 3426 02:04:06,680 --> 02:04:08,440 WORKING ON THAT EVEN IF THIS IS 3427 02:04:08,440 --> 02:04:09,840 OUTSIDE THE SCOPE. 3428 02:04:09,840 --> 02:04:11,920 IT'S STILL A HIGH UNMET AREA. 3429 02:04:11,920 --> 02:04:14,320 >> WELL, I WOULD BE HAPPY TO 3430 02:04:14,320 --> 02:04:16,080 MEET WITH YOU SEPARATELY IF YOU 3431 02:04:16,080 --> 02:04:18,000 WANT TO TALK ABOUT THAT. 3432 02:04:18,000 --> 02:04:20,800 AND THE FIRST THING I WOULD 3433 02:04:20,800 --> 02:04:21,720 THINK PROBABLY GOOGLE IS GOING 3434 02:04:21,720 --> 02:04:23,080 TO BE YOUR FRIEND. 3435 02:04:23,080 --> 02:04:26,240 YOU KNOW, IF THERE'S A WAY TO 3436 02:04:26,240 --> 02:04:27,600 PROMOTE CERTAIN THINGS SO THAT 3437 02:04:27,600 --> 02:04:32,560 THEY COME UP THAT WAY, BUT I -- 3438 02:04:32,560 --> 02:04:32,800 YEAH. 3439 02:04:32,800 --> 02:04:34,200 THAT'S A PROBLEM. 3440 02:04:34,200 --> 02:04:34,840 IT'S A CHALLENGE. 3441 02:04:34,840 --> 02:04:39,600 >> I'D BE THERAPY SPEAK TO -- 3442 02:04:39,600 --> 02:04:41,400 I'D BE HAPPY TO SPEAK TO YOU. 3443 02:04:41,400 --> 02:04:48,320 >> WE SEE THE CAME IN 3444 02:04:48,320 --> 02:04:50,280 COLORECTAL, ALSO AFTER DIAGNOSIS 3445 02:04:50,280 --> 02:04:55,600 THROUGH SURVIVORSHIP WITHIN OUR 3446 02:04:55,600 --> 02:04:57,960 EARLY AGE ONSET COMMUNITY WHERE 3447 02:04:57,960 --> 02:04:59,440 VALVE BLOCKAGE, MANAGEMENT OF 3448 02:04:59,440 --> 02:05:00,560 CARE AFTER, AFTER TREATMENT, 3449 02:05:00,560 --> 02:05:01,720 IT'S CHALLENGING. 3450 02:05:01,720 --> 02:05:04,040 WE DO SEE A LOT OF UTILIZATION 3451 02:05:04,040 --> 02:05:06,280 OF URGENT CARES. 3452 02:05:06,280 --> 02:05:13,320 VERY CURIOUS WHAT YOU'LL FIND 3453 02:05:13,320 --> 02:05:13,600 WITH THAT. 3454 02:05:13,600 --> 02:05:14,440 WITH THOSE STUDIES AS YOU 3455 02:05:14,440 --> 02:05:15,800 CONTINUE TO LOOK AT IT. 3456 02:05:15,800 --> 02:05:22,120 I WAS GOING TO ASK ABOUT 3457 02:05:22,120 --> 02:05:22,800 SURVIVORSHIP POST-COVID, DURING 3458 02:05:22,800 --> 02:05:24,600 COVID, WHAT PEOPLE WERE DEALING 3459 02:05:24,600 --> 02:05:25,240 WITH DURING COVID. 3460 02:05:25,240 --> 02:05:32,600 I DON'T KNOW IF I CAN SAY 3461 02:05:32,600 --> 02:05:33,200 POST-COVID. 3462 02:05:33,200 --> 02:05:33,960 FOREVER-COVID. 3463 02:05:33,960 --> 02:05:38,840 HOW THAT WOULD LIKE. 3464 02:05:38,840 --> 02:05:41,720 LOOK, TO CAPTURE GAPS IN CARE 3465 02:05:41,720 --> 02:05:42,040 PATIENTS HAD. 3466 02:05:42,040 --> 02:05:43,960 WE HEARD THAT FROM PATIENTS THAT 3467 02:05:43,960 --> 02:05:47,360 THEY WERE DELAYED IN THEIR 3468 02:05:47,360 --> 02:05:47,680 SURVEILLANCE. 3469 02:05:47,680 --> 02:05:50,080 SO EVEN THOUGH THEY WERE HIGH 3470 02:05:50,080 --> 02:05:53,440 RISK, THEY HAD HIGH RISK OF 3471 02:05:53,440 --> 02:05:54,320 REOCCURENCE, SURVEILLANCE WAS 3472 02:05:54,320 --> 02:05:59,960 PUSHED BACK DUE TO COVID DELAYS, 3473 02:05:59,960 --> 02:06:01,920 AND SORT OF DIFFICULTIES OF 3474 02:06:01,920 --> 02:06:03,320 GETTING AN APPOINTMENT. 3475 02:06:03,320 --> 02:06:06,280 I'M ALSO JUST CURIOUS ABOUT HOW 3476 02:06:06,280 --> 02:06:07,200 YOU PLAN TO APPROACH THAT AND 3477 02:06:07,200 --> 02:06:08,600 SORT OF WHAT YOUR VISION IS FOR 3478 02:06:08,600 --> 02:06:10,880 THE RESEARCH THAT WILL BE DONE 3479 02:06:10,880 --> 02:06:13,160 IN THAT AREA. 3480 02:06:13,160 --> 02:06:14,600 >> EXCELLENT QUESTIONS. 3481 02:06:14,600 --> 02:06:17,080 AND VERY TIMELY. 3482 02:06:17,080 --> 02:06:18,200 OBVIOUSLY IMPORTANT TO US, TO 3483 02:06:18,200 --> 02:06:19,800 THE OFFICE AND WORK WE'RE DOING. 3484 02:06:19,800 --> 02:06:21,000 THE FIRST THING THAT COMES TO 3485 02:06:21,000 --> 02:06:25,400 MIND IS THE WORK THAT KATRINA 3486 02:06:25,400 --> 02:06:26,600 MENTIONED ON TELEHEALTH, AND 3487 02:06:26,600 --> 02:06:28,000 EXTREMELY APPLICABLE TO CANCER 3488 02:06:28,000 --> 02:06:29,200 SURVIVORS, AND WE JUST HEARD 3489 02:06:29,200 --> 02:06:31,200 THAT WE THINK THERE WILL BE AT 3490 02:06:31,200 --> 02:06:35,640 LEAST SOME FORM OF CONTINUATION 3491 02:06:35,640 --> 02:06:37,880 OF SUPPORT FOR TELEHEALTH, FROM 3492 02:06:37,880 --> 02:06:40,680 CMS, BUT OBVIOUSLY GET -- MAKING 3493 02:06:40,680 --> 02:06:41,880 SURE SURVIVORS HAVE ACCESS TO 3494 02:06:41,880 --> 02:06:44,080 THE CARE THEY NEED I THINK IS 3495 02:06:44,080 --> 02:06:45,520 THE FIRST HURDLE. 3496 02:06:45,520 --> 02:06:48,200 THERE ARE ALSO OBVIOUSLY SOME 3497 02:06:48,200 --> 02:06:49,640 BIG GAPS AND CHALLENGES TO WHAT 3498 02:06:49,640 --> 02:06:51,080 TELEHEALTH CAN DO FOR US, EVEN 3499 02:06:51,080 --> 02:06:52,520 FOR PEOPLE WHO HAVE BEEN 3500 02:06:52,520 --> 02:06:53,240 DIAGNOSED WITH CANCER. 3501 02:06:53,240 --> 02:06:59,520 AND MAY EVEN HAVE A PROVIDER 3502 02:06:59,520 --> 02:07:00,440 ALREADY. 3503 02:07:00,440 --> 02:07:01,600 IT'S STILL AN INCOMPLETE 3504 02:07:01,600 --> 02:07:02,000 SOLUTION. 3505 02:07:02,000 --> 02:07:03,880 I THINK THERE'S STILL -- YOU 3506 02:07:03,880 --> 02:07:07,400 KNOW, SOME OF WHAT MAY BE HINTS 3507 02:07:07,400 --> 02:07:08,720 WILL HELP WITH THIS, BUT SOME OF 3508 02:07:08,720 --> 02:07:10,760 WHAT WE NEED IS INFORMATION. 3509 02:07:10,760 --> 02:07:14,160 YOU KNOW, I KNOW FROM MY OWN 3510 02:07:14,160 --> 02:07:15,800 PERSONAL EXPERIENCE, MY OWN 3511 02:07:15,800 --> 02:07:17,400 CLINIC AND HOSPITAL, WHERE I 3512 02:07:17,400 --> 02:07:18,520 WORK, YOU KNOW, WHAT HAS 3513 02:07:18,520 --> 02:07:20,560 HAPPENED OVER THE LAST TWO 3514 02:07:20,560 --> 02:07:23,160 YEARS, BUT WE REALLY DON'T HAVE 3515 02:07:23,160 --> 02:07:25,960 A LOT OF INFORMATION ABOUT WHAT 3516 02:07:25,960 --> 02:07:27,200 SURVIVORS HAVE BEEN DOING DURING 3517 02:07:27,200 --> 02:07:28,360 THIS TIME, WHERE THEY HAVE BEEN, 3518 02:07:28,360 --> 02:07:30,120 WHO IS TAKING CARE OF THEM, WHAT 3519 02:07:30,120 --> 02:07:34,640 ARE THEY EXPERIENCING. 3520 02:07:34,640 --> 02:07:37,200 YOU KNOW, THINK FROM THE GENERAL 3521 02:07:37,200 --> 02:07:40,200 CONSENSUS, THERE'S A LOT OF 3522 02:07:40,200 --> 02:07:43,560 ANXIETY AND SURVIVORS FEEL THEY 3523 02:07:43,560 --> 02:07:45,280 VULNERABLE, VULNERABLE TO COVID, 3524 02:07:45,280 --> 02:07:48,440 AND AS WELL AS TO CANCER-RELATED 3525 02:07:48,440 --> 02:07:52,960 ISSUES AND RECURRENCE AND NEW 3526 02:07:52,960 --> 02:07:53,200 CANCER. 3527 02:07:53,200 --> 02:07:57,320 AND IT IS MY HOPE THAT PAPER, AS 3528 02:07:57,320 --> 02:07:58,760 I MENTIONED ON CHILDHOOD CANCER 3529 02:07:58,760 --> 02:08:00,400 SURVIVORS, WE'LL START TO SEE 3530 02:08:00,400 --> 02:08:02,760 MORE DATA ABOUT -- THAT IS 3531 02:08:02,760 --> 02:08:04,880 REASSURING TO SURVIVORS AND THEY 3532 02:08:04,880 --> 02:08:06,960 WILL START TO FEEL -- WILL START 3533 02:08:06,960 --> 02:08:10,200 TO HAVE MORE EVIDENCE ABOUT WHAT 3534 02:08:10,200 --> 02:08:13,280 POPULATIONS ARE UNIQUELY 3535 02:08:13,280 --> 02:08:18,960 SUSCEPTIBLE AND WE CAN TRY TO BE 3536 02:08:18,960 --> 02:08:20,480 RESURING WHERE THE RISK IS THE 3537 02:08:20,480 --> 02:08:23,400 SAME AS THE GENERAL COMMUNITY. 3538 02:08:23,400 --> 02:08:28,440 THERE ARE A LOT OF UNKNOWNS. 3539 02:08:28,440 --> 02:08:28,920 >> VICKIE? 3540 02:08:28,920 --> 02:08:32,320 >> THANK YOU. 3541 02:08:32,320 --> 02:08:34,360 EMILY, I JUST HAVE TO SAY, I 3542 02:08:34,360 --> 02:08:37,400 REPRESENT THE COALITION AGAINST 3543 02:08:37,400 --> 02:08:40,240 CHILDHOOD CANCER, AND WE ARE 3544 02:08:40,240 --> 02:08:43,600 GETTING READY TO GET THE STAR 3545 02:08:43,600 --> 02:08:44,560 ACT REAUTHORIZED. 3546 02:08:44,560 --> 02:08:46,800 AND I HAVE TO SAY THAT THE 3547 02:08:46,800 --> 02:08:49,120 INFORMATION THAT YOU GAVE ABOUT 3548 02:08:49,120 --> 02:08:52,120 THE SURVIVORSHIP PIECE OF THE 3549 02:08:52,120 --> 02:08:54,680 STAR ACT IS AMAZING. 3550 02:08:54,680 --> 02:08:57,680 AND OUR COMMUNITY NEEDS TO KNOW 3551 02:08:57,680 --> 02:08:59,680 ABOUT THESE THINGS PRIOR TO US 3552 02:08:59,680 --> 02:09:07,400 GOING BACK AND ASKING THEM TOED 3553 02:09:07,400 --> 02:09:08,360 ADVOCATE FOR REAUTHORIZATION, 3554 02:09:08,360 --> 02:09:09,560 I'M THRILLED TO HEAR THERE'S 3555 02:09:09,560 --> 02:09:13,840 PROGRESS IN TRANSITION, CARE 3556 02:09:13,840 --> 02:09:14,360 MODELS, DISPARITIES. 3557 02:09:14,360 --> 02:09:17,080 THIS HAS BEEN THE BEST HALF HOUR 3558 02:09:17,080 --> 02:09:21,760 I'VE HAD HEARING FROM YOU IN A 3559 02:09:21,760 --> 02:09:22,320 REALLY LONG TIME. 3560 02:09:22,320 --> 02:09:24,840 I THINK THAT YOU PROBABLY ALSO 3561 02:09:24,840 --> 02:09:26,960 NEED TO TOOT THAT HORN MORE AND 3562 02:09:26,960 --> 02:09:29,040 MAKE SURE THAT THAT INFORMATION 3563 02:09:29,040 --> 02:09:32,000 IS GETTING OUT TO OUR COMMUNITY 3564 02:09:32,000 --> 02:09:35,360 BECAUSE THEY WOULD BE HAPPY TO 3565 02:09:35,360 --> 02:09:35,920 HEAR IT. 3566 02:09:35,920 --> 02:09:38,320 >> WELL, DO YOU, VICKIE, HAVE 3567 02:09:38,320 --> 02:09:39,880 YOU SEEN THE GOVERNMENT 3568 02:09:39,880 --> 02:09:41,000 ACCOUNTABILITY OFFICE REPORT ON 3569 02:09:41,000 --> 02:09:42,720 THE STAR ACT ACTIVITIES? 3570 02:09:42,720 --> 02:09:45,120 THERE IS A REPORT. 3571 02:09:45,120 --> 02:09:48,600 THERE'S A LOT ACTUALLY THAT'S 3572 02:09:48,600 --> 02:09:49,080 RELEVANT. 3573 02:09:49,080 --> 02:09:49,960 GO AHEAD. 3574 02:09:49,960 --> 02:09:53,400 >> THERE MAY BE A LOT. 3575 02:09:53,400 --> 02:09:54,960 I THINK IT'S NOT BEING 3576 02:09:54,960 --> 02:09:55,280 DISSEMINATED. 3577 02:09:55,280 --> 02:09:57,600 >> I UNDERSTAND. 3578 02:09:57,600 --> 02:09:59,200 >> IN WAYS THAT IT IS ACCESSIBLE 3579 02:09:59,200 --> 02:10:04,680 TO THE PEOPLE THAT WE HAVE TO 3580 02:10:04,680 --> 02:10:05,600 ASK TO ADVOCATE. 3581 02:10:05,600 --> 02:10:08,400 BUT I'M HAPPY TO KNOW ABOUT 3582 02:10:08,400 --> 02:10:08,680 THAT. 3583 02:10:08,680 --> 02:10:12,480 AND I WOULD LOVE TO HAVE A 3584 02:10:12,480 --> 02:10:15,920 FOLLOW-UP WITH EMILY. 3585 02:10:15,920 --> 02:10:17,000 >> OKAY. 3586 02:10:17,000 --> 02:10:17,320 >> ANNIE? 3587 02:10:17,320 --> 02:10:21,120 >> YEAH, THANK YOU FOR THE 3588 02:10:21,120 --> 02:10:21,840 WONDERFUL PRESENTATION. 3589 02:10:21,840 --> 02:10:23,000 YOU SPOKE TO THE STEERING 3590 02:10:23,000 --> 02:10:26,440 COMMITTEE LAST MONTH, WE HAD A 3591 02:10:26,440 --> 02:10:28,160 ROUNDTABLE LAST WEEK, ABLE TO 3592 02:10:28,160 --> 02:10:29,520 TALK ABOUT SURVIVORSHIP ISSUES. 3593 02:10:29,520 --> 02:10:31,800 AND PEOPLE ARE VERY EXCITED 3594 02:10:31,800 --> 02:10:32,920 ABOUT THIS. 3595 02:10:32,920 --> 02:10:34,200 MY QUESTION IS COMING BECAUSE 3596 02:10:34,200 --> 02:10:36,880 ONE OF THE THEMES THAT HAS COME 3597 02:10:36,880 --> 02:10:42,120 UP WITH YOU AND DR. SHARPLESS, 3598 02:10:42,120 --> 02:10:43,240 DR. GODDARD, END CANCER AS WE 3599 02:10:43,240 --> 02:10:45,960 KNOW IT. 3600 02:10:45,960 --> 02:10:48,160 DR. GODDARD IN HER PRESENTATION 3601 02:10:48,160 --> 02:10:50,360 SPOKE ABOUT THE LANGUAGE OF 3602 02:10:50,360 --> 02:10:52,080 SURVIVOR AND, YOU KNOW, PEOPLE 3603 02:10:52,080 --> 02:10:53,520 NOT IDENTIFYING WITH THAT, WHICH 3604 02:10:53,520 --> 02:10:55,280 I PERSONALLY HAD ISSUES WITH BUT 3605 02:10:55,280 --> 02:10:58,920 WON'T GO INTO RIGHT NOW. 3606 02:10:58,920 --> 02:11:01,200 WHAT I WANT TO KNOW, WHEN THE 3607 02:11:01,200 --> 02:11:04,600 WORDS FIRST CAME OUT, END 3608 02:11:04,600 --> 02:11:08,200 CANCER, WHAT DOES THAT MEAN? 3609 02:11:08,200 --> 02:11:09,600 DR. SHARPLESS HAD BEAUTIFUL 3610 02:11:09,600 --> 02:11:12,240 FIGURES OF DIFFERENT AREAS. 3611 02:11:12,240 --> 02:11:16,200 AND ONE THING THAT MIGHT TIE IN 3612 02:11:16,200 --> 02:11:17,800 TO THAT SURVIVOR LANGUAGE THING, 3613 02:11:17,800 --> 02:11:19,120 YOU KNOW, SEEING A FOCUS ON 3614 02:11:19,120 --> 02:11:21,400 PEOPLE WHO ARE LIVING WITH 3615 02:11:21,400 --> 02:11:33,200 CANCER WHICH YOU MENTIONED DR. 3616 02:11:33,200 --> 02:11:33,440 GODDARD. 3617 02:11:33,440 --> 02:11:34,920 THE CONCEPT, EXPANDING BEYOND 3618 02:11:34,920 --> 02:11:36,880 CURE TO PREVENTION SPACE AND 3619 02:11:36,880 --> 02:11:38,880 OTHER SPACES, MY PERSONAL 3620 02:11:38,880 --> 02:11:41,240 FAVORITE, PEOPLE LIVING WITH 3621 02:11:41,240 --> 02:11:42,840 CANCER. 3622 02:11:42,840 --> 02:11:43,120 THAT AREA. 3623 02:11:43,120 --> 02:11:47,240 MY QUESTION, ARE YOU SEEING 3624 02:11:47,240 --> 02:11:49,440 ALIGNMENT OR AGREEMENT AMONGST 3625 02:11:49,440 --> 02:11:51,200 RESEARCH COMMUNITIES, FUNDERS, 3626 02:11:51,200 --> 02:11:53,200 AS WELL AS PATIENT COMMUNITIES? 3627 02:11:53,200 --> 02:11:55,240 HOW ARE PEOPLE COMING AT THIS? 3628 02:11:55,240 --> 02:12:01,040 WHAT ARE YOU HEARING AMONGST 3629 02:12:01,040 --> 02:12:01,480 YOURSELVES? 3630 02:12:01,480 --> 02:12:04,200 >> WOW, SO FIRST OF ALL, I WOULD 3631 02:12:04,200 --> 02:12:06,000 SAY SURVIVORSHIP IS A VERY 3632 02:12:06,000 --> 02:12:07,080 IMPORTANT PART OF ENDING CANCER 3633 02:12:07,080 --> 02:12:08,000 AS WE KNOW IT. 3634 02:12:08,000 --> 02:12:15,360 THAT'S WHY I LOVE TO USE DR. 3635 02:12:15,360 --> 02:12:16,720 SHARPLESS'S QUOTE, AS AN 3636 02:12:16,720 --> 02:12:17,400 ILLUSTRATION. 3637 02:12:17,400 --> 02:12:19,920 THE GENERAL PERCEPTION IS THAT 3638 02:12:19,920 --> 02:12:22,280 HIS PRIORITY IS DIAGNOSIS AND 3639 02:12:22,280 --> 02:12:24,600 TREATMENT OF CANCER YET IN THAT 3640 02:12:24,600 --> 02:12:26,000 QUOTE HE'S HIGHLIGHTING A BIG 3641 02:12:26,000 --> 02:12:28,200 PART OF ENDING CANCER AS WE KNOW 3642 02:12:28,200 --> 02:12:35,240 IT IS MAKING SURE PEOPLE LIVE 3643 02:12:35,240 --> 02:12:37,360 LONGER AFTER A DIAGNOSIS OF 3644 02:12:37,360 --> 02:12:41,960 CANCER, CERTAINLY A BIG PART OF 3645 02:12:41,960 --> 02:12:42,920 THAT WORK. 3646 02:12:42,920 --> 02:12:44,400 I'VE BEEN IN SURVIVORSHIP FOR A 3647 02:12:44,400 --> 02:12:46,640 LONG TIME, ALSO A GENERAL 3648 02:12:46,640 --> 02:12:52,760 INTERNIST WORKING AT A CANCER 3649 02:12:52,760 --> 02:12:53,120 CENTER. 3650 02:12:53,120 --> 02:12:55,240 I'M USED TO PLAYING IN THE FIELD 3651 02:12:55,240 --> 02:12:57,440 OF ONCOLOGY EVEN THOUGH I'M NOT 3652 02:12:57,440 --> 02:12:59,840 AN ONCOLOGIST AND HAVE NEVER 3653 02:12:59,840 --> 02:13:01,400 FELT ANY SENSE OF COMPETITION OR 3654 02:13:01,400 --> 02:13:03,640 THAT WE'RE VYING FOR SHARED 3655 02:13:03,640 --> 02:13:03,920 RESOURCES. 3656 02:13:03,920 --> 02:13:05,760 YOU KNOW, WE ALL DO SHARE A 3657 02:13:05,760 --> 02:13:06,920 COMMON GOAL. 3658 02:13:06,920 --> 02:13:08,080 AND ACTUALLY ENDING CANCER AS WE 3659 02:13:08,080 --> 02:13:10,640 KNOW IT IS A VERY NICE WAY TO 3660 02:13:10,640 --> 02:13:12,320 PUT THAT GOAL. 3661 02:13:12,320 --> 02:13:15,560 AND I THINK IN SURVIVORSHIP WE 3662 02:13:15,560 --> 02:13:17,800 KNOW, NOT I THINK, WE KNOW THAT 3663 02:13:17,800 --> 02:13:20,440 EVERY TIME THERE'S AN ADVANCE IN 3664 02:13:20,440 --> 02:13:22,760 DETECTION OR TREATMENT, THERE IS 3665 02:13:22,760 --> 02:13:24,440 A CORRESPONDING NEED IN THE 3666 02:13:24,440 --> 02:13:25,800 SURVIVORSHIP SETTING TO RESPOND 3667 02:13:25,800 --> 02:13:27,400 TO THAT ADVANCE. 3668 02:13:27,400 --> 02:13:29,680 SO, WE HAVE ADVANCES IN 3669 02:13:29,680 --> 02:13:31,720 TREATMENT RELATED TO IMMUNE 3670 02:13:31,720 --> 02:13:32,400 CHECKPOINT INHIBITOR THERAPY, WE 3671 02:13:32,400 --> 02:13:33,720 HAVE TO RESPOND TO THAT. 3672 02:13:33,720 --> 02:13:35,800 SO HOW ARE WE GOING TO MONITOR 3673 02:13:35,800 --> 02:13:37,840 PATIENTS IN THE LONG-TERM 3674 02:13:37,840 --> 02:13:40,920 FOLLOW-UP SETTING OR WHAT DO WE 3675 02:13:40,920 --> 02:13:43,200 SEE WITH LATE TERM EFFECTS, THAT 3676 02:13:43,200 --> 02:13:44,400 CARRIES ACROSS THE BOARD AND 3677 02:13:44,400 --> 02:13:46,600 THAT'S THE SPIRIT THAT I SEE 3678 02:13:46,600 --> 02:13:50,760 HERE AND THAT I'VE ALWAYS 3679 02:13:50,760 --> 02:13:51,400 EXPERIENCED HERE. 3680 02:13:51,400 --> 02:13:52,920 I HOPE THAT ANSWERS YOUR 3681 02:13:52,920 --> 02:13:53,720 QUESTION. 3682 02:13:53,720 --> 02:13:55,640 I CAN'T REMEMBER WHAT ELSE WAS 3683 02:13:55,640 --> 02:13:56,000 THERE. 3684 02:13:56,000 --> 02:13:57,120 I'M SORRY. 3685 02:13:57,120 --> 02:14:01,800 I DO GET PASSIONATE ABOUT THIS 3686 02:14:01,800 --> 02:14:02,320 ALSO. 3687 02:14:02,320 --> 02:14:05,400 >> IT'S NICE TO HEAR YOUR 3688 02:14:05,400 --> 02:14:05,720 PASSION. 3689 02:14:05,720 --> 02:14:08,480 I HAVE A QUESTION AS RELATES TO 3690 02:14:08,480 --> 02:14:08,800 THAT. 3691 02:14:08,800 --> 02:14:11,960 HOW DO YOU SEE IT ALIGNING WITH 3692 02:14:11,960 --> 02:14:13,400 SOME CLINICAL TRIALS? 3693 02:14:13,400 --> 02:14:17,080 ON THE PANEL REVIEWING A PANEL, 3694 02:14:17,080 --> 02:14:19,000 THEY SAID, OH, WELL, THIS IS A 3695 02:14:19,000 --> 02:14:21,000 GREAT DRUG, WE'RE GOING TO TEST 3696 02:14:21,000 --> 02:14:22,800 IT OUT, WE'LL SEE IF IT WORKS 3697 02:14:22,800 --> 02:14:25,000 FOR PATIENTS, BUT THEY ARE GOING 3698 02:14:25,000 --> 02:14:28,120 TO LIVE ARE GRADE 5 DIARRHEA. 3699 02:14:28,120 --> 02:14:30,960 SO HOW DO WE BETTER INFORM WHAT 3700 02:14:30,960 --> 02:14:34,040 QUALITY OF LIKE GOOD QUALITY OF 3701 02:14:34,040 --> 02:14:35,760 LIFE LOOKS LIKE, NOT JUST BEING 3702 02:14:35,760 --> 02:14:39,000 ALIVE BUT WHAT DOES GOOD QUALITY 3703 02:14:39,000 --> 02:14:44,080 OF LIFE LOOK LIKE, WITH PAIN AND 3704 02:14:44,080 --> 02:14:48,320 DIARRHEA, JOINT PAIN AND BONE 3705 02:14:48,320 --> 02:14:49,640 PAIN THAT AFFECT SURVIVORSHIP, 3706 02:14:49,640 --> 02:14:52,560 CURIOUS HOW YOUR OFFICE WILL 3707 02:14:52,560 --> 02:14:54,200 DEFINE A GOOD QUALITY OF LIFE 3708 02:14:54,200 --> 02:14:56,560 FOR A SURVIVOR AND HOW THAT 3709 02:14:56,560 --> 02:15:00,160 ALIGNS WITH THE SORT OF R&D TO 3710 02:15:00,160 --> 02:15:06,840 FIND DRUGS TO CURE CANCER. 3711 02:15:06,840 --> 02:15:08,640 >> HONESTLY, I THINK IT'S THE 3712 02:15:08,640 --> 02:15:09,560 SURVIVORS AND ADVOCATES AND 3713 02:15:09,560 --> 02:15:11,600 THEIR FAMILY MEMBERS WHO HAVE TO 3714 02:15:11,600 --> 02:15:15,600 TELL US THAT. 3715 02:15:15,600 --> 02:15:17,000 YOU KNOW, WHAT FEELS LIKE A GOOD 3716 02:15:17,000 --> 02:15:19,200 AND MEANINGFUL LIFE TO A PERSON 3717 02:15:19,200 --> 02:15:21,080 WHO HAS BEEN DIAGNOSED WITH 3718 02:15:21,080 --> 02:15:24,120 CANCER AND THEIR FAMILY? 3719 02:15:24,120 --> 02:15:29,040 I SEE MY ROLE AS TRANSLATING OR 3720 02:15:29,040 --> 02:15:31,760 ELEVATING OR PROMOTING WHAT WE 3721 02:15:31,760 --> 02:15:33,840 ARE HEARING FROM SURVIVORS AND 3722 02:15:33,840 --> 02:15:35,000 THEIR FAMILIES. 3723 02:15:35,000 --> 02:15:38,200 AND IF SURVIVORS AND THEIR 3724 02:15:38,200 --> 02:15:40,440 FAMILIES NEED MORE INFORMATION 3725 02:15:40,440 --> 02:15:41,320 TO MAKE THOSE DECISIONS, THEN 3726 02:15:41,320 --> 02:15:43,960 THAT'S WHAT WE SHOULD BE FOCUSED 3727 02:15:43,960 --> 02:15:44,280 ON. 3728 02:15:44,280 --> 02:15:47,560 IF SURVIVORS AND THEIR FAMILIES 3729 02:15:47,560 --> 02:15:50,320 WANT, YOU KNOW, MORE DATA THEN 3730 02:15:50,320 --> 02:15:51,960 WE CAN DO THAT. 3731 02:15:51,960 --> 02:15:53,160 IF THEY WANT BETTER MEASUREMENT 3732 02:15:53,160 --> 02:15:54,920 TOOLS, WE CAN DO THAT. 3733 02:15:54,920 --> 02:15:57,400 IF IT'S REALLY ABOUT 3734 02:15:57,400 --> 02:15:58,920 COMMUNICATION AND FIGURING OUT 3735 02:15:58,920 --> 02:16:01,000 HOW TO PROMOTE BETTER METHODS 3736 02:16:01,000 --> 02:16:03,840 FOR PROVIDERS AND PATIENTS TO 3737 02:16:03,840 --> 02:16:05,800 COMMUNICATE WITH EACH OTHER, 3738 02:16:05,800 --> 02:16:07,440 MAYBE MASKS COMING OFF FOR 3739 02:16:07,440 --> 02:16:09,720 EVERYONE INVOLVED MIGHT BE PART 3740 02:16:09,720 --> 02:16:10,520 OF THAT. 3741 02:16:10,520 --> 02:16:11,280 AND HONESTLY, I'M LOOKING 3742 02:16:11,280 --> 02:16:16,600 FORWARD TO THAT FROM A CLINICAL 3743 02:16:16,600 --> 02:16:17,520 PERSPECTIVE. 3744 02:16:17,520 --> 02:16:18,480 CERTAINLY IT MEANS SURVIVORS AND 3745 02:16:18,480 --> 02:16:20,760 -- OR THAT PROVIDERS HAVE TO 3746 02:16:20,760 --> 02:16:23,960 HAVE CULTURAL UNDERSTANDING OR 3747 02:16:23,960 --> 02:16:25,600 AT LEAST SOME WILLINGNESS TO 3748 02:16:25,600 --> 02:16:27,520 HEAR FROM SURVIVORS AND THEIR 3749 02:16:27,520 --> 02:16:29,480 FAMILIES ABOUT WHAT MIGHT BE 3750 02:16:29,480 --> 02:16:31,960 CULTURALLY RELEVANT FOR THEM. 3751 02:16:31,960 --> 02:16:35,200 SO I -- BUT I THINK ALL OF THAT 3752 02:16:35,200 --> 02:16:37,040 IS, IN MY ROLE, IS ABOUT 3753 02:16:37,040 --> 02:16:38,360 LISTENING TO WHAT IS HAPPENING 3754 02:16:38,360 --> 02:16:40,960 AND WHAT PEOPLE NEED AND THEN 3755 02:16:40,960 --> 02:16:42,600 FINDING WAYS TO PROMOTE RESEARCH 3756 02:16:42,600 --> 02:16:43,200 AND SUPPORT INVESTIGATORS WHO 3757 02:16:43,200 --> 02:16:48,080 WANT TO DO THAT KIND OF WORK. 3758 02:16:48,080 --> 02:16:52,000 3759 02:16:52,000 --> 02:16:52,360 3760 02:16:52,360 --> 02:16:55,760 >> MY NAME IS YELAK. 3761 02:16:55,760 --> 02:16:57,240 MYELOMA PATIENT. 3762 02:16:57,240 --> 02:17:02,400 MYELOMA IS CONSIDERED INCURABLE, 3763 02:17:02,400 --> 02:17:10,400 SO WE HAVE BEEN STRUGGLING WITH 3764 02:17:10,400 --> 02:17:11,360 BALANCING SURVIVING AND 3765 02:17:11,360 --> 02:17:14,080 SURVIVORSHIP AND TREATMENT IN 3766 02:17:14,080 --> 02:17:16,160 SURVIVORSHIP, SO THANK YOU FOR 3767 02:17:16,160 --> 02:17:16,840 THAT INCLUSIVE DEFINITION THAT 3768 02:17:16,840 --> 02:17:19,200 YOU SHARED AT THE BEGINNING OF 3769 02:17:19,200 --> 02:17:20,640 YOUR PRESENTATION. 3770 02:17:20,640 --> 02:17:22,320 AND IN MY OPINION, SURVIVORSHIP 3771 02:17:22,320 --> 02:17:29,280 IS ONE OF THE UNMET NEEDS FOR 3772 02:17:29,280 --> 02:17:30,800 DISEASES CONSIDERED INCURABLE 3773 02:17:30,800 --> 02:17:35,000 BECAUSE PEOPLE'S MINDSET IS 3774 02:17:35,000 --> 02:17:36,200 ALWAYS TREATMENT, NOT 3775 02:17:36,200 --> 02:17:39,200 NECESSARILY LOOKING 3776 02:17:39,200 --> 02:17:40,800 POST-TREATMENT OR INCORPORATING 3777 02:17:40,800 --> 02:17:41,360 SURVIVORSHIP INTO THEIR 3778 02:17:41,360 --> 02:17:42,360 TREATMENT JOURNEY. 3779 02:17:42,360 --> 02:17:46,680 SO THANKS FOR YOUR PRESENTATION. 3780 02:17:46,680 --> 02:17:48,400 >> I AGREE. 3781 02:17:48,400 --> 02:17:49,880 >> THANK YOU SO MUCH. 3782 02:17:49,880 --> 02:17:52,600 I THINK WE COULD KEEP TALKING 3783 02:17:52,600 --> 02:17:53,400 ABOUT SURVIVORSHIP. 3784 02:17:53,400 --> 02:17:54,960 WE'RE ALL VERY EXCITED ABOUT IT. 3785 02:17:54,960 --> 02:17:57,720 I HOPE THAT IF THERE'S AN 3786 02:17:57,720 --> 02:17:59,960 OPPORTUNITY FOR US TO SEE OR 3787 02:17:59,960 --> 02:18:02,640 HELP INFORM SORT OF WHAT THAT 3788 02:18:02,640 --> 02:18:05,760 BAR IS FOR A GOOD QUALITY OF 3789 02:18:05,760 --> 02:18:07,320 LIFE FOR SURVIVORS, I KNOW MANY 3790 02:18:07,320 --> 02:18:08,920 OF US WOULD BE VERY INTERESTED. 3791 02:18:08,920 --> 02:18:13,080 I THINK YEAR BOWING TO HEAR FROM 3792 02:18:13,080 --> 02:18:14,720 MANY PEOPLE ON THIS MEETING 3793 02:18:14,720 --> 02:18:15,360 AFTERWARDS. 3794 02:18:15,360 --> 02:18:27,000 THANK YOU SO MUCH FOR YOUR 3795 02:18:27,000 --> 02:18:27,320 PRESENTATION. 3796 02:18:27,320 --> 02:18:31,320 NEXT WE HAVE EXCITING NEWS FROM 3797 02:18:31,320 --> 02:18:32,880 BUDGET AND LEGISLATIVE FOLKS. 3798 02:18:32,880 --> 02:18:36,680 I WANT TO WELCOME MISS HOLLY 3799 02:18:36,680 --> 02:18:38,600 GIBBONS, DEPUTY DIRECTOR OF 3800 02:18:38,600 --> 02:18:39,600 OFFICE OF GOVERNMENTAL 3801 02:18:39,600 --> 02:18:40,880 REGULATIONS AND LOOKING FORWARD 3802 02:18:40,880 --> 02:18:45,560 TO THIS PRESENTATION AND UPDATE. 3803 02:18:45,560 --> 02:18:47,760 >> THANKS ANJEE AND EVERYONE. 3804 02:18:47,760 --> 02:18:48,200 GOOD AFTERNOON. 3805 02:18:48,200 --> 02:18:51,080 WE APPRECIATE YOU HAVING US JOIN 3806 02:18:51,080 --> 02:18:51,440 YOU. 3807 02:18:51,440 --> 02:18:53,360 I'M HOLLY GIBBONS, DEPUTY 3808 02:18:53,360 --> 02:18:55,160 DIRECTOR OF NCI OFFICE OF 3809 02:18:55,160 --> 02:18:57,960 GOVERNMENT AND CONGRESSIONAL 3810 02:18:57,960 --> 02:18:58,200 RELATIONS. 3811 02:18:58,200 --> 02:18:59,280 MY COLLEAGUE MAUREEN CLARK 3812 02:18:59,280 --> 02:19:02,560 SZEMBORSKI IS ALSO JOINING ME 3813 02:19:02,560 --> 02:19:03,200 TODAY. 3814 02:19:03,200 --> 02:19:05,000 NEXT SLIDE PLEASE. 3815 02:19:05,000 --> 02:19:07,480 TODAY I'LL FOCUS ON LATEST NEWS 3816 02:19:07,480 --> 02:19:09,880 FOR THE FY 22 BUDGET AND 3817 02:19:09,880 --> 02:19:11,800 APPROPRIATIONS PROCESS, A TIMELY 3818 02:19:11,800 --> 02:19:13,400 TOPIC THIS WEEK, TODAY IN 3819 02:19:13,400 --> 02:19:13,920 PARTICULAR. 3820 02:19:13,920 --> 02:19:16,000 MAUREEN WILL PROVIDE UPDATES ON 3821 02:19:16,000 --> 02:19:19,480 SEVERAL LEGISLATIVE ISSUES OF 3822 02:19:19,480 --> 02:19:20,000 INTEREST. 3823 02:19:20,000 --> 02:19:23,600 AND CAP RECENT BRIEFINGS AND 3824 02:19:23,600 --> 02:19:23,920 EVENTS. 3825 02:19:23,920 --> 02:19:24,840 NEXT SLIDE PLEASE. 3826 02:19:24,840 --> 02:19:28,600 FIRST I WANTED TO START BY 3827 02:19:28,600 --> 02:19:29,120 ACKNOWLEDGING DEVASTATING 3828 02:19:29,120 --> 02:19:30,880 SITUATION IN UKRAINE AND TALK 3829 02:19:30,880 --> 02:19:34,280 BRIEFLY HOW THAT'S REALLY SHAPED 3830 02:19:34,280 --> 02:19:35,600 FINAL NEGOTIATIONS FOR FY 22 3831 02:19:35,600 --> 02:19:37,400 OMNIBUS PACKAGE OVER THE PAST 3832 02:19:37,400 --> 02:19:37,920 FEW DAYS. 3833 02:19:37,920 --> 02:19:39,320 WE STARTED TO PREPARE THIS 3834 02:19:39,320 --> 02:19:41,480 UPDATE LAST WEEK AND EVEN AS I 3835 02:19:41,480 --> 02:19:42,680 WORKED ON IT EARLY THIS PAST 3836 02:19:42,680 --> 02:19:44,560 WEEKEND IT LOOKS LIKE CONGRESS 3837 02:19:44,560 --> 02:19:47,960 MIGHT PURSUE ANOTHER VERY 3838 02:19:47,960 --> 02:19:48,600 SHORT-TERM CONTINUING RESOLUTION 3839 02:19:48,600 --> 02:19:52,560 OR C.R. TO PROVIDE AN EXTRA FEW 3840 02:19:52,560 --> 02:19:53,600 DAYS TO FINALIZE THE PACKAGE 3841 02:19:53,600 --> 02:19:55,240 INTO EARLY NEXT WEEK. 3842 02:19:55,240 --> 02:19:56,400 THEN IT LOOKED LIKE THEY 3843 02:19:56,400 --> 02:19:57,560 WOULDN'T NEED TO. 3844 02:19:57,560 --> 02:19:59,880 THEN UNTIL 11 P.M. LAST NIGHT 3845 02:19:59,880 --> 02:20:02,000 WHEN NEWS BROKE THEY WOULD, AND 3846 02:20:02,000 --> 02:20:05,000 WE'RE LOOKING AT A SHORT 3847 02:20:05,000 --> 02:20:06,000 FOUR-DAY C.R. THAT WOULD LIKELY 3848 02:20:06,000 --> 02:20:07,960 BE CONSIDERED TODAY AND LATER 3849 02:20:07,960 --> 02:20:08,240 THIS WEEK. 3850 02:20:08,240 --> 02:20:11,600 SO WE DID HAVE THE OMNIBUS TEXT 3851 02:20:11,600 --> 02:20:13,200 RELEASED EARLY THIS MORNING. 3852 02:20:13,200 --> 02:20:15,400 HOUSE VOTES EXPECTED LATER TODAY 3853 02:20:15,400 --> 02:20:18,560 ON THE FOUR-DAY C.R. AND 3854 02:20:18,560 --> 02:20:19,040 OMNIBUS. 3855 02:20:19,040 --> 02:20:20,000 TIMING WAS COMING DOWN TO THE 3856 02:20:20,000 --> 02:20:21,520 WIRE ALREADY AND SO THAT 3857 02:20:21,520 --> 02:20:23,040 ADDITIONAL FOUR DAYS WAS REALLY 3858 02:20:23,040 --> 02:20:25,680 NEEDED FOR FINAL VOTES IN THE 3859 02:20:25,680 --> 02:20:27,760 SENATE AND PREPARING THE FINAL 3860 02:20:27,760 --> 02:20:28,480 PACKAGE. 3861 02:20:28,480 --> 02:20:32,120 TO RECAP SOME EVENTS LEADING TO 3862 02:20:32,120 --> 02:20:33,480 TODAY, SOME REFLECT IN 3863 02:20:33,480 --> 02:20:34,320 HEADLINES. 3864 02:20:34,320 --> 02:20:35,360 CLEARLY THE SITUATION IN UKRAINE 3865 02:20:35,360 --> 02:20:36,920 INTENSIFIED LAST WEEKEND AND 3866 02:20:36,920 --> 02:20:39,200 INTO THIS WEEK. 3867 02:20:39,200 --> 02:20:40,400 INCLUDING ADDITIONAL CIVILIAN 3868 02:20:40,400 --> 02:20:42,240 LIVES LOST. 3869 02:20:42,240 --> 02:20:43,240 CALLS WITHIN CONGRESS TO 3870 02:20:43,240 --> 02:20:47,000 ACCELERATE AID TO UKRAINE ALSO 3871 02:20:47,000 --> 02:20:47,600 INTENSIFIED INCLUDING UKRAINIAN 3872 02:20:47,600 --> 02:20:48,600 PRESIDENT PARTICIPATING IN A 3873 02:20:48,600 --> 02:20:49,480 ZOOM METING WITH MEMBERS OF 3874 02:20:49,480 --> 02:20:51,760 CONGRESS FROM BOTH THE HOUSE AND 3875 02:20:51,760 --> 02:20:52,760 SENATE ON SATURDAY. 3876 02:20:52,760 --> 02:20:55,400 I ALSO WANT TO NOTE HERE THAT MY 3877 02:20:55,400 --> 02:20:56,840 SLIDES HAVE PROBABLY BECOME 3878 02:20:56,840 --> 02:20:58,640 OUTDATED SINCE I UPDATED THEM 3879 02:20:58,640 --> 02:20:59,320 THIS MORNING. 3880 02:20:59,320 --> 02:21:01,600 CONGRESS DOES PLAN ON PROVIDING 3881 02:21:01,600 --> 02:21:11,360 13 BENT -- $13.6 BILLION IN 3882 02:21:11,360 --> 02:21:11,680 AID. 3883 02:21:11,680 --> 02:21:14,200 REPORTS ARE JUST KNOSP EMERGING 3884 02:21:14,200 --> 02:21:15,920 WITHIN THE LAST HOUR, THE COVID 3885 02:21:15,920 --> 02:21:17,560 RESPONSE FUNDING MAY BE STRIPPED 3886 02:21:17,560 --> 02:21:18,440 FROM THE OMNIBUS. 3887 02:21:18,440 --> 02:21:20,520 I KNOW WE DON'T HAVE TIME TO GET 3888 02:21:20,520 --> 02:21:23,840 INTO THE WEEDS BUT THERE HAVE 3889 02:21:23,840 --> 02:21:25,320 BEEN SIGNIFICANT HURDLES THIS 3890 02:21:25,320 --> 02:21:26,000 AFTERNOON RELATED TO OFFSETS IN 3891 02:21:26,000 --> 02:21:27,840 THE BILL THAT WOULD HAVE USED 3892 02:21:27,840 --> 02:21:30,800 UNSPENT COVID AID TO STATES FROM 3893 02:21:30,800 --> 02:21:32,920 PREVIOUS RELIEF PACKAGES TO HELP 3894 02:21:32,920 --> 02:21:34,240 PAY FOR THESE NEW PROVISIONS. 3895 02:21:34,240 --> 02:21:36,960 YOU CAN STAY TUNED FOR PRESS 3896 02:21:36,960 --> 02:21:38,600 COVERAGE ON THAT SITUATION AS IT 3897 02:21:38,600 --> 02:21:39,920 EVOLVED THIS AFTERNOON. 3898 02:21:39,920 --> 02:21:41,160 I'M HOPEFUL CONGRESS WILL WORK 3899 02:21:41,160 --> 02:21:43,400 THROUGH IT BUT THAT MAY MEAN 3900 02:21:43,400 --> 02:21:47,040 ADVANCING COVID RESPONSE FUNDING 3901 02:21:47,040 --> 02:21:47,480 SEPARATELY. 3902 02:21:47,480 --> 02:21:48,480 AND THOSE ARE SOME HEADLINES 3903 02:21:48,480 --> 02:21:49,800 WE'RE SEEING IN THE LAST HALF 3904 02:21:49,800 --> 02:21:50,400 HOUR OR SO. 3905 02:21:50,400 --> 02:21:53,600 IF YOU WANT TO FOLLOW IN REAL 3906 02:21:53,600 --> 02:21:54,440 TIME, VARIOUS CONGRESSIONAL 3907 02:21:54,440 --> 02:21:55,640 REPORTERS ARE TWEETING UPDATES 3908 02:21:55,640 --> 02:21:57,000 FROM THE CAPITOL. 3909 02:21:57,000 --> 02:21:59,280 I WON'T GO INTO DETAIL HERE BUT 3910 02:21:59,280 --> 02:22:01,400 DID WANT TO MENTION CONGRESS IS 3911 02:22:01,400 --> 02:22:03,480 WORKING TO ADVANCE ADDITIONAL 3912 02:22:03,480 --> 02:22:04,720 SANCTIONS AGAINST RUSSIA AND 3913 02:22:04,720 --> 02:22:06,600 PRESIDENT BIDEN ALSO ANNOUNCED A 3914 02:22:06,600 --> 02:22:07,880 BAN ON RUSSIAN ENERGY IMPORTS 3915 02:22:07,880 --> 02:22:09,560 THIS WEEK SO THAT'S THE BACKDROP 3916 02:22:09,560 --> 02:22:12,240 AND FORCES AT PLAY IN MOVING THE 3917 02:22:12,240 --> 02:22:13,400 FINAL PACKAGE TO PASSAGE, 3918 02:22:13,400 --> 02:22:17,480 HOPEFULLY WITHIN THE NEXT FEW 3919 02:22:17,480 --> 02:22:18,160 DAYS. 3920 02:22:18,160 --> 02:22:18,800 NEXT SLIDE PLEASE. 3921 02:22:18,800 --> 02:22:21,480 I'LL FOLLOW UP ON SOME KEY 3922 02:22:21,480 --> 02:22:23,200 UPDATES DR. SHARPLESS SHARED 3923 02:22:23,200 --> 02:22:23,720 EARLIER. 3924 02:22:23,720 --> 02:22:27,160 WHAT DOES THIS MEAN FOR NCI AND 3925 02:22:27,160 --> 02:22:27,640 NIH? 3926 02:22:27,640 --> 02:22:33,200 WE DID LEARN OF THE FINAL 3927 02:22:33,200 --> 02:22:34,520 PROPOSAL LEVELS, THE BILL 3928 02:22:34,520 --> 02:22:38,000 INCLUDES $45 BILLION FOR NIH, 3929 02:22:38,000 --> 02:22:41,200 INCREASE OF $2.25 BILLION, IT 3930 02:22:41,200 --> 02:22:53,600 WOULD PROVIDE APPROXIMATELY 3931 02:22:53,600 --> 02:22:55,960 $6.9 BILLION, AND ARPA-H WITHIN 3932 02:22:55,960 --> 02:22:57,600 HHS, GIVES HHS SECRETARY 3933 02:22:57,600 --> 02:22:59,200 AUTHORITY TO TRANSFER TO ANY 3934 02:22:59,200 --> 02:23:01,720 PART OF THE AGENCY INCLUDING NIH 3935 02:23:01,720 --> 02:23:03,920 WITHIN 30 DAYS OF ENACTMENT OF 3936 02:23:03,920 --> 02:23:05,320 THE OMNIBUS. 3937 02:23:05,320 --> 02:23:08,200 THIS TABLE IS SOMETHING I REFER 3938 02:23:08,200 --> 02:23:10,600 TO REGULARLY, A REFERENCE FOR 3939 02:23:10,600 --> 02:23:12,160 THE GROUP, HOPE IT'S HELPFUL. 3940 02:23:12,160 --> 02:23:15,720 IT PROVIDES RECAP OF THE 3941 02:23:15,720 --> 02:23:16,960 PRESIDENT'S REQUEST, INITIAL 3942 02:23:16,960 --> 02:23:17,640 HOUSE PACKAGE, SENATE DRAFT, NOW 3943 02:23:17,640 --> 02:23:20,600 WHAT WE'RE SEEING IN THE 3944 02:23:20,600 --> 02:23:20,840 OMNIBUS. 3945 02:23:20,840 --> 02:23:23,600 I'LL ALSO MENTION THE OMNIBUS 3946 02:23:23,600 --> 02:23:24,800 INCLUDES POLICY PROVISIONS OF 3947 02:23:24,800 --> 02:23:26,600 INTEREST TO THE CANCER RESEARCH 3948 02:23:26,600 --> 02:23:28,520 COMMUNITY, MAUREEN WILL TALK 3949 02:23:28,520 --> 02:23:30,240 MORE ABOUT TEMPORARY EXTENSIONS 3950 02:23:30,240 --> 02:23:31,400 OF TELEHEALTH FLEXIBILITY, AND I 3951 02:23:31,400 --> 02:23:34,280 WANT TO NOTE THE BILL AIMS TO 3952 02:23:34,280 --> 02:23:36,240 PROVIDE THE FOOD AND DRUG 3953 02:23:36,240 --> 02:23:39,280 ADMINISTRATION WITH AUTHORITY TO 3954 02:23:39,280 --> 02:23:41,160 REGULATE SYNTHETIC NICOTINE THAT 3955 02:23:41,160 --> 02:23:42,680 IS NOT DERIVED DIRECTLY FROM 3956 02:23:42,680 --> 02:23:43,440 TOBACCO PLANTS. 3957 02:23:43,440 --> 02:23:47,800 A GRAY AREA AND HAS CREATED 3958 02:23:47,800 --> 02:23:49,040 REGULATORY CHALLENGES, 3959 02:23:49,040 --> 02:23:50,360 PARTICULARLY REGARDING FLAVORED 3960 02:23:50,360 --> 02:23:51,440 E-CIGARETTE PRODUCTS THAT 3961 02:23:51,440 --> 02:23:52,440 CONTAIN SYNTHETIC NICOTINE AND 3962 02:23:52,440 --> 02:23:55,120 SO THESE PROVISIONS AIM TO 3963 02:23:55,120 --> 02:23:56,600 PROVIDE CLARITY AROUND THE FDA'S 3964 02:23:56,600 --> 02:23:59,880 AUTHORITY HERE. 3965 02:23:59,880 --> 02:24:00,640 NEXT SLIDE. 3966 02:24:00,640 --> 02:24:02,280 I ALSO LIKE TO SHARE 3967 02:24:02,280 --> 02:24:03,920 CONGRESSIONAL CALENDAR AS A 3968 02:24:03,920 --> 02:24:05,240 POINT OF REFERENCE. 3969 02:24:05,240 --> 02:24:07,520 FLAGGED HERE WITH THE DIAMONDS 3970 02:24:07,520 --> 02:24:10,000 YOU SEE THE CURRENT C.R. EXPIRES 3971 02:24:10,000 --> 02:24:12,440 FRIDAY, NEW FOUR-DAY C.R. IF 3972 02:24:12,440 --> 02:24:13,560 ENACTED IS EXPECTED TO BE VOTED 3973 02:24:13,560 --> 02:24:17,000 ON IN THE HOUSE TODAY, THAT 3974 02:24:17,000 --> 02:24:19,920 WOULD EXPIRE NEXT TUESDAY, MARCH 3975 02:24:19,920 --> 02:24:20,080 15. 3976 02:24:20,080 --> 02:24:21,760 JUST SCANNING SOME OF THE 3977 02:24:21,760 --> 02:24:23,920 COMMENTS AND HEADLINES OVER THE 3978 02:24:23,920 --> 02:24:25,160 PAST FEW HOURS, LAST NIGHT 3979 02:24:25,160 --> 02:24:27,080 BEFORE THE OFFICIAL NEWS BROKE 3980 02:24:27,080 --> 02:24:29,720 THAT A CR WOULD BE NEEDED 3981 02:24:29,720 --> 02:24:31,360 MAJORITY LEADER HOYER TOLD 3982 02:24:31,360 --> 02:24:33,440 REPORTERS WE MIGHT HAVE TO DO A 3983 02:24:33,440 --> 02:24:35,640 C.R. FOR THE PURPOSES OF GETTING 3984 02:24:35,640 --> 02:24:36,640 THE BILL SIGNED. 3985 02:24:36,640 --> 02:24:40,280 RANKING MEMBER OF THE SENATE 3986 02:24:40,280 --> 02:24:42,560 APPROPRIATIONS COMMITTEE SENATOR 3987 02:24:42,560 --> 02:24:43,240 SHELBY OF ALABAMA ALSO 3988 02:24:43,240 --> 02:24:45,400 ACKNOWLEDGED IF THE FRIDAY 3989 02:24:45,400 --> 02:24:53,360 DEADLINE WOULDN'T BE FEASIBLE 3990 02:24:53,360 --> 02:24:55,360 THAT WILL TIDE US OVER, 3991 02:24:55,360 --> 02:24:57,120 REASSURING IN THE MIDST OF NEW 3992 02:24:57,120 --> 02:25:08,600 DEVELOPMENTS, HOUSE 3993 02:25:08,600 --> 02:25:09,600 APPROPRIATIONS, DELAURA, THAT 3994 02:25:09,600 --> 02:25:13,200 WE'RE GOING TO PASS AN OMNIBUS 3995 02:25:13,200 --> 02:25:13,400 TODAY. 3996 02:25:13,400 --> 02:25:14,960 FINGERS CROSSED WE MAKE IT 3997 02:25:14,960 --> 02:25:17,040 THROUGH THE NEXT WEEK WITHOUT A 3998 02:25:17,040 --> 02:25:18,720 GOVERNMENT SHUTDOWN AND ASSUMING 3999 02:25:18,720 --> 02:25:20,400 THAT HAPPENS I WANT TO LOOK 4000 02:25:20,400 --> 02:25:24,560 AHEAD AND NOTE HERE THAT IN THE 4001 02:25:24,560 --> 02:25:27,560 SENATE JUDICIARY COMMITTEE 4002 02:25:27,560 --> 02:25:33,000 HEARINGS FOR SUPREME COURT 4003 02:25:33,000 --> 02:25:36,200 NOMINEE FOR JUDGE BROWN ARE ON 4004 02:25:36,200 --> 02:25:37,560 THE 21st, AFFECTING THE REST 4005 02:25:37,560 --> 02:25:39,000 OF THE SENATE CALENDAR OVER THE 4006 02:25:39,000 --> 02:25:42,440 NEXT MONTH OR TWO. 4007 02:25:42,440 --> 02:25:44,520 SHE WAS CONFIRMED TO SERVE IN 4008 02:25:44,520 --> 02:25:45,800 HER CURRENT SEAT ON THE U.S. 4009 02:25:45,800 --> 02:25:48,200 COURT OF APPEALS IN THE D.C. 4010 02:25:48,200 --> 02:25:51,200 CIRCUIT LESS THAN A YEAR AGO, 4011 02:25:51,200 --> 02:25:54,400 53-44 WITH REPUBLICAN SENATOR 4012 02:25:54,400 --> 02:25:56,600 SUSAN COLLINS, LINDSEY GRAHAM 4013 02:25:56,600 --> 02:25:58,320 AND LISA MURKOWSKI VOTING IN 4014 02:25:58,320 --> 02:25:58,520 FAVOR. 4015 02:25:58,520 --> 02:25:59,520 IF CONFIRMED SHE WOULD BE THE 4016 02:25:59,520 --> 02:26:01,800 FIRST BLACK WOMAN TO SERVE ON 4017 02:26:01,800 --> 02:26:04,280 THE SUPREME COURT. 4018 02:26:04,280 --> 02:26:06,120 NEXT SLIDE PLEASE. 4019 02:26:06,120 --> 02:26:08,120 WE'RE ALSO EXPECTING THE RELEASE 4020 02:26:08,120 --> 02:26:10,000 OF THE PRESIDENT'S FY23 BUDGET 4021 02:26:10,000 --> 02:26:11,400 PROPOSAL IN THE COMING WEEKS 4022 02:26:11,400 --> 02:26:14,600 WHICH WILL KICK OFF THE FY23 4023 02:26:14,600 --> 02:26:16,240 APPROPRIATION CYCLE, WITH OFFICE 4024 02:26:16,240 --> 02:26:19,400 OF MANAGEMENT AND BUDGET, HHS, 4025 02:26:19,400 --> 02:26:20,520 NIH CONGRESSIONAL HEARINGS 4026 02:26:20,520 --> 02:26:22,400 EXPECTED OVER THE NEXT FEW 4027 02:26:22,400 --> 02:26:22,800 MONTHS. 4028 02:26:22,800 --> 02:26:25,120 NOT MUCH DOWN TIME FOR 4029 02:26:25,120 --> 02:26:27,520 APPROPRIATORS AND THEIR STAFF IN 4030 02:26:27,520 --> 02:26:30,280 BETWEEN FINALIZING FY 22 AND 4031 02:26:30,280 --> 02:26:34,720 THEN LAUNCHING INTO FY23 4032 02:26:34,720 --> 02:26:35,920 DELIBERATIONS AND HEARINGS 4033 02:26:35,920 --> 02:26:36,880 LIKELY WEEKS LATER. 4034 02:26:36,880 --> 02:26:37,640 NEXT SLIDE PLEASE. 4035 02:26:37,640 --> 02:26:41,360 BEFORE I HAND OVER TO MAUREEN I 4036 02:26:41,360 --> 02:26:44,000 DID WANT TO QUICKLY HIGHLIGHT, 4037 02:26:44,000 --> 02:26:46,040 NEXT SLIDE, THERE ARE SEVERAL 4038 02:26:46,040 --> 02:26:48,600 RETIREMENTS COMING UP AHEAD OF 4039 02:26:48,600 --> 02:26:50,200 THE MIDTERM ELECTIONS. 4040 02:26:50,200 --> 02:26:52,400 HOUSE PRESS GALLERY KEEPS A 4041 02:26:52,400 --> 02:26:54,400 LIST, THE CASUALTY LIST, ON ITS 4042 02:26:54,400 --> 02:26:55,040 WEBSITE. 4043 02:26:55,040 --> 02:26:59,920 I'LL MENTION A HANDFUL HERE THAT 4044 02:26:59,920 --> 02:27:05,320 HOLD NOTABLE LEADERSHIP 4045 02:27:05,320 --> 02:27:06,920 POSITIONS. 4046 02:27:06,920 --> 02:27:12,600 SENATOR BURR, SENATOR LEAHY AND 4047 02:27:12,600 --> 02:27:14,880 SHELBY, AND RANKING MEMBER OF 4048 02:27:14,880 --> 02:27:16,960 THE LABOR HHS APPROPRIATIONS 4049 02:27:16,960 --> 02:27:20,200 SUBCOMMITTEE, SENATOR BLUNT. 4050 02:27:20,200 --> 02:27:23,680 IN THE HOUSE SPEAR AND 4051 02:27:23,680 --> 02:27:24,920 BUTTERFIELD SERVE AS DEMOCRATIC 4052 02:27:24,920 --> 02:27:27,200 CO-CHAIRS OF THE CHILDHOOD 4053 02:27:27,200 --> 02:27:31,480 CANCER CAUCUS, REPRESENTATIVE 4054 02:27:31,480 --> 02:27:33,560 SPEAR ALSO CO-CHAIRS BIOMEDICAL 4055 02:27:33,560 --> 02:27:34,720 CAUCUS, BUTTERFIELD THE RARE 4056 02:27:34,720 --> 02:27:35,720 DISEASE CAUCUS. 4057 02:27:35,720 --> 02:27:39,280 HE SERVES ON THE ENERGY AND 4058 02:27:39,280 --> 02:27:42,840 COMMERCE COMMITTEE. 4059 02:27:42,840 --> 02:27:45,080 DAVID PRICE FROM NORTH CAROLINA, 4060 02:27:45,080 --> 02:27:53,040 SENIOR APPROPRIATOR AS WELL AS 4061 02:27:53,040 --> 02:27:53,800 REPRESENTATIVE LUCILLE ALLARD, 4062 02:27:53,800 --> 02:27:57,200 REPRESENTATIVE BRADY RANKING MEN 4063 02:27:57,200 --> 02:28:05,320 -- MEMBER ON WAYS AND MEANS AND 4064 02:28:05,320 --> 02:28:06,080 KINZINGER. 4065 02:28:06,080 --> 02:28:09,160 WE EXPECT TO SEE MANY NEW 4066 02:28:09,160 --> 02:28:10,560 MEMBERS BUT ALSO SEVERAL NEW 4067 02:28:10,560 --> 02:28:13,520 LEADERS AND MEMBERS OF OUR 4068 02:28:13,520 --> 02:28:14,320 COMMITTEES OF JURISDICTION. 4069 02:28:14,320 --> 02:28:15,480 NEXT SLIDE PLEASE. 4070 02:28:15,480 --> 02:28:18,160 I'LL HAND OVER TO MAUREEN. 4071 02:28:18,160 --> 02:28:19,320 >> THANK YOU. 4072 02:28:19,320 --> 02:28:20,680 IT'S A HOLLY MENTIONED, WE WOULD 4073 02:28:20,680 --> 02:28:28,160 LIKE TO WALK YOU THROUGH SOME OF 4074 02:28:28,160 --> 02:28:29,680 THE AUTHORIZING LEGISLATION 4075 02:28:29,680 --> 02:28:31,880 WE'RE TRACKING. 4076 02:28:31,880 --> 02:28:33,400 AS YOU MIGHT SUSPECT, FOCUS HAS 4077 02:28:33,400 --> 02:28:37,760 BEEN ON APPROPRIATIONS, WE 4078 02:28:37,760 --> 02:28:40,600 HAVEN'T SEEN RECENT MOVEMENT BUT 4079 02:28:40,600 --> 02:28:43,000 WE EXPECT SOME WILL MAKE IT TO 4080 02:28:43,000 --> 02:28:44,280 THE PRESIDENT'S DESK BY THE END 4081 02:28:44,280 --> 02:28:46,040 OF THIS SESSION OF CONGRESS AT 4082 02:28:46,040 --> 02:28:49,000 THE END OF THE CALENDAR YEAR. 4083 02:28:49,000 --> 02:28:53,040 FIRST YOU MIGHT HAVE SEEN THAT 4084 02:28:53,040 --> 02:28:55,520 THIS DOES CONTAIN EXTENSION OF 4085 02:28:55,520 --> 02:28:55,960 MEDICARE TELEHEALTH 4086 02:28:55,960 --> 02:28:58,080 FLEXIBILITIES FOR A PERIOD OF 4087 02:28:58,080 --> 02:29:00,320 TIME AFTER THE EXPIRATION OF THE 4088 02:29:00,320 --> 02:29:01,880 COVID-19 PUBLIC HEALTH ENERGY. 4089 02:29:01,880 --> 02:29:05,600 IT ALSO DOES NOT MAKE THESE 4090 02:29:05,600 --> 02:29:06,240 TELEHEALTH FLEXIBILITIES 4091 02:29:06,240 --> 02:29:07,000 PERMANENT. 4092 02:29:07,000 --> 02:29:09,000 CONGRESS WOULD NEED TO ACT. 4093 02:29:09,000 --> 02:29:11,240 SOME OF THE LEGISLATIVE 4094 02:29:11,240 --> 02:29:12,000 PROPOSALS ARE LISTED HERE. 4095 02:29:12,000 --> 02:29:13,440 ONE THAT SEEMS TO BE GETTING 4096 02:29:13,440 --> 02:29:15,120 QUITE A BIT OF TRACTION IS 4097 02:29:15,120 --> 02:29:17,280 CONNECT FOR HEALTH ACT THAT HAS 4098 02:29:17,280 --> 02:29:18,520 A NUMBER OF BIPARTISAN 4099 02:29:18,520 --> 02:29:22,480 CO-SPONSORS IN THE HOUSE AND 4100 02:29:22,480 --> 02:29:22,720 SENATE. 4101 02:29:22,720 --> 02:29:24,040 NEXT SLIDE PLEASE. 4102 02:29:24,040 --> 02:29:26,760 ANOTHER POTENTIAL VEHICLE TO 4103 02:29:26,760 --> 02:29:28,400 MOVE TELEHEALTH IS CURES 2.0 4104 02:29:28,400 --> 02:29:31,400 ACT, AS YOU MIGHT GUESS FROM THE 4105 02:29:31,400 --> 02:29:32,880 NAME A FOLLOW-ON TO 21ST CENTURY 4106 02:29:32,880 --> 02:29:34,360 CURES ACT, SIMILAR TO THAT BILL 4107 02:29:34,360 --> 02:29:38,720 THIS EFFORT IS BEING SPEARHEADED 4108 02:29:38,720 --> 02:29:41,360 BY REPRESENTATIVES DEGETTE, FROM 4109 02:29:41,360 --> 02:29:43,760 COLORADO, AND UPTON FROM 4110 02:29:43,760 --> 02:29:44,800 MICHIGAN. 4111 02:29:44,800 --> 02:29:47,160 IN ADDITION TO MAKING SOME OF 4112 02:29:47,160 --> 02:29:48,000 THE TELEHEALTH FLEXIBILITIES 4113 02:29:48,000 --> 02:29:51,920 PERMANENT, THE BILL AIMS TO 4114 02:29:51,920 --> 02:29:53,200 ADDRESS CLINICAL TRIALS 4115 02:29:53,200 --> 02:29:54,000 DIVERSITY DOVETAILING WITH 4116 02:29:54,000 --> 02:29:55,680 SEVERAL NCI EFFORTS IN THIS 4117 02:29:55,680 --> 02:29:59,880 AREA, AS WELL AS AUTHORIZE 4118 02:29:59,880 --> 02:30:01,560 APPROPRIATIONS FOR DIFFERENT NIH 4119 02:30:01,560 --> 02:30:03,440 RESEARCH EFFORTS INCLUDING LONG 4120 02:30:03,440 --> 02:30:07,400 COVID AND ANTIBIOTIC RESISTANCE. 4121 02:30:07,400 --> 02:30:08,800 THIS BILL CONTAINS AUTHORIZING 4122 02:30:08,800 --> 02:30:11,280 LEGISLATION THAT WOULD LEAD TO 4123 02:30:11,280 --> 02:30:15,200 THE ESTABLISHMENT OF ARPA-H, AS 4124 02:30:15,200 --> 02:30:17,400 HOLLY MENTIONED, WE HAVE AN 4125 02:30:17,400 --> 02:30:19,400 APPROPRIATION FOR ARPA-H IN THIS 4126 02:30:19,400 --> 02:30:22,720 OMNIBUS BUT IT DOES NEED TO BE 4127 02:30:22,720 --> 02:30:24,600 AUTHORIZED FOR IT TO HAPPEN. 4128 02:30:24,600 --> 02:30:26,200 REPRESENTATIVES DEGETTE AND 4129 02:30:26,200 --> 02:30:28,680 UPTON PROPOSED HOUSING THE NEW 4130 02:30:28,680 --> 02:30:30,320 AGENCY WITHIN NIH, BUT IF WE GO 4131 02:30:30,320 --> 02:30:36,080 TO THE NEXT SLIDE YOU MIGHT BE 4132 02:30:36,080 --> 02:30:39,280 AWARE THAT REPRESENTATIVE ESHOO, 4133 02:30:39,280 --> 02:30:40,320 NEXT SLIDE PLEASE, 4134 02:30:40,320 --> 02:30:42,040 REPRESENTATIVE ANNA ESHOO, WHO 4135 02:30:42,040 --> 02:30:43,000 IS THE CHAIR OF THE HEALTH 4136 02:30:43,000 --> 02:30:46,000 SUBCOMMITTEE OF THE HOUSE ENERGY 4137 02:30:46,000 --> 02:30:47,640 AND COMMERCE COMMITTEE, HAD 4138 02:30:47,640 --> 02:30:49,480 PREVIOUSLY INTRODUCED A 4139 02:30:49,480 --> 02:30:51,840 STANDALONE BILL THAT WOULD 4140 02:30:51,840 --> 02:30:53,760 CREATE ARPA-H WITHIN HHS. 4141 02:30:53,760 --> 02:30:55,800 THERE SEEMS TO BE A LOT OF WORK 4142 02:30:55,800 --> 02:30:58,360 BEHIND THE SCREENS BETWEEN 4143 02:30:58,360 --> 02:30:59,720 REPRESENTATIVES ESHOO, DEGETTE, 4144 02:30:59,720 --> 02:31:01,120 AND UPTON TO COME TO AGREEMENT 4145 02:31:01,120 --> 02:31:05,960 ON WHERE ARPA-H WILL EVENTUALLY 4146 02:31:05,960 --> 02:31:06,120 SIT. 4147 02:31:06,120 --> 02:31:09,200 REPRESENTATIVE DEGETTE AND UPTON 4148 02:31:09,200 --> 02:31:12,440 INDICATED THEY ARE SUPPORTIVE OF 4149 02:31:12,440 --> 02:31:14,080 HOUSING OUTSIDE OF NIH, 4150 02:31:14,080 --> 02:31:15,840 ELSEWHERE WITHIN HHS, BUT WILL 4151 02:31:15,840 --> 02:31:18,960 HAVE TO SEE WHERE IT ENDS UP. 4152 02:31:18,960 --> 02:31:22,960 THIS WAS PART OF THE 4153 02:31:22,960 --> 02:31:24,920 CONVERSATION AT A HEARING HELD 4154 02:31:24,920 --> 02:31:26,200 ON FEBRUARY 8, MEMBERS ON BOTH 4155 02:31:26,200 --> 02:31:27,960 SIDES OF THE AISLE WERE 4156 02:31:27,960 --> 02:31:30,440 SUPPORTIVE OF THE NEW AGENCY BUT 4157 02:31:30,440 --> 02:31:31,880 THEY DID EMPHASIZE THEY WANTED 4158 02:31:31,880 --> 02:31:37,240 IT TO HAVE A DIFFERENT CULTURE 4159 02:31:37,240 --> 02:31:37,520 THAN NIH. 4160 02:31:37,520 --> 02:31:38,760 NEXT SLIDE PLEASE. 4161 02:31:38,760 --> 02:31:41,680 WE WANTED TO TOUCH ON A PRIORITY 4162 02:31:41,680 --> 02:31:44,320 THAT'S BEEN EXPRESSED BY BOTH 4163 02:31:44,320 --> 02:31:44,840 REPUBLICAN AND DEMOCRATIC 4164 02:31:44,840 --> 02:31:48,400 LEADERS IN THE HOUSE AND SENATE, 4165 02:31:48,400 --> 02:31:50,440 WHICH IS TO MAINTAIN AND ENHANCE 4166 02:31:50,440 --> 02:31:52,200 AMERICA'S ABILITY TO SERVE AS 4167 02:31:52,200 --> 02:31:53,760 LEADER IN RESEARCH INNOVATION ON 4168 02:31:53,760 --> 02:31:55,400 THE GLOBAL STAGE. 4169 02:31:55,400 --> 02:31:58,000 SO IN RESPONSE THE SENATE PASSED 4170 02:31:58,000 --> 02:32:00,320 THE U.S. INNOVATION AND 4171 02:32:00,320 --> 02:32:02,720 COMPETITION ACT LAST JUNE, HOUSE 4172 02:32:02,720 --> 02:32:05,400 FOLLOWED IN FEBRUARY WITH THEIR 4173 02:32:05,400 --> 02:32:06,000 VERSION, AMERICA COMPETES ACT. 4174 02:32:06,000 --> 02:32:08,960 I DON'T KNOW HOW YOU CAN READ 4175 02:32:08,960 --> 02:32:10,840 THIS BUT THE BILLS ARE VERY 4176 02:32:10,840 --> 02:32:12,600 DIFFERENT FROM ONE ANOTHER. 4177 02:32:12,600 --> 02:32:15,280 SO THE MEMBERS WHO SERVE ON THE 4178 02:32:15,280 --> 02:32:15,960 CONFERENCE COMMITTEE MADE OF 4179 02:32:15,960 --> 02:32:18,000 MEMBERS OF THE HOUSE AND SENATE 4180 02:32:18,000 --> 02:32:19,280 REALLY HAVE THEIR WORK CUT OUT 4181 02:32:19,280 --> 02:32:21,200 FOR THEM TO COME UP WITH A 4182 02:32:21,200 --> 02:32:22,600 CONFERENCE PACKAGE THAT HITS ON 4183 02:32:22,600 --> 02:32:24,240 PRIORITIES OF BOTH OF THE 4184 02:32:24,240 --> 02:32:24,680 CHAMBERS. 4185 02:32:24,680 --> 02:32:27,000 AND I DID WANT TO MENTION 4186 02:32:27,000 --> 02:32:29,920 AMERICA COMPETES DOES CONTAIN 4187 02:32:29,920 --> 02:32:31,360 REAUTHORIZATION FOR SBIR AND 4188 02:32:31,360 --> 02:32:32,960 STTR PROGRAMS WHICH ARE SET TO 4189 02:32:32,960 --> 02:32:35,440 EXPIRE AT THE END OF THIS FISCAL 4190 02:32:35,440 --> 02:32:38,000 YEAR WITHOUT REAUTHORIZATION. 4191 02:32:38,000 --> 02:32:38,960 NEXT SLIDE PLEASE. 4192 02:32:38,960 --> 02:32:40,920 WE WANTED TO MAKE SURE YOU ARE 4193 02:32:40,920 --> 02:32:43,320 AWARE OF THE PREVENT PANDEMICS 4194 02:32:43,320 --> 02:32:48,600 ACT, ALTHOUGH THE NIH PROVISIONS 4195 02:32:48,600 --> 02:32:51,280 ARE EXPECTED AT OTHER 4196 02:32:51,280 --> 02:32:52,720 INSTITUTES, THE BILL ALSO WOULD 4197 02:32:52,720 --> 02:32:54,400 REQUIRE FOR THE FIRST TIME 4198 02:32:54,400 --> 02:32:55,440 SENATE CONFIRMATION OF THE CDC 4199 02:32:55,440 --> 02:32:58,040 DIRECTOR WHICH WOULD BE A NEW 4200 02:32:58,040 --> 02:33:00,600 STEP IN THAT CONFIRMATION 4201 02:33:00,600 --> 02:33:01,000 PROCESS. 4202 02:33:01,000 --> 02:33:02,120 NEXT SLIDE PLEASE. 4203 02:33:02,120 --> 02:33:04,240 AND FINALLY WE WANTED TO MENTION 4204 02:33:04,240 --> 02:33:05,280 AMIDST EVERYTHING THAT'S GOING 4205 02:33:05,280 --> 02:33:07,920 ON IN CONGRESS, WE HAVE HAD THE 4206 02:33:07,920 --> 02:33:09,440 OPPORTUNITY TO SHARE THE GREAT 4207 02:33:09,440 --> 02:33:15,000 WORK THAT'S GOING ON AT NCI AT 4208 02:33:15,000 --> 02:33:17,320 THREE VIRTUAL EVENTS, CONGRESS 4209 02:33:17,320 --> 02:33:26,960 IS MORE COMFORTABLE WITH ZOOM. 4210 02:33:26,960 --> 02:33:30,440 STAFFERS WERE WELCOMED FROM 4211 02:33:30,440 --> 02:33:34,240 APPROPRIATIONS COMMITTEES TO NCI 4212 02:33:34,240 --> 02:33:37,560 FREDERICK IN NOVEMBER. 4213 02:33:37,560 --> 02:33:42,520 DR. VIK PRESENTED AT A WORKSHOP, 4214 02:33:42,520 --> 02:33:45,000 DR. JACK SHERN PRESENTED AT A 4215 02:33:45,000 --> 02:33:50,320 BRIEFING, AND DR. SHARPLESS 4216 02:33:50,320 --> 02:33:51,200 PARTICIPATED IN A ROUNDTABLE 4217 02:33:51,200 --> 02:33:52,200 DISCUSSION WITH MEMBERS OF THE 4218 02:33:52,200 --> 02:33:53,040 HOUSE CANCER CAUCUS. 4219 02:33:53,040 --> 02:33:54,400 WE'RE HAPPY TO ANSWER ANY 4220 02:33:54,400 --> 02:33:55,600 QUESTIONS THAT YOU HAVE. 4221 02:33:55,600 --> 02:33:57,200 SORRY TO HAVE RUN A LITTLE BIT 4222 02:33:57,200 --> 02:33:59,360 OVER WITH OUR TIME BUT WE REALLY 4223 02:33:59,360 --> 02:34:03,360 APPRECIATE THE INVITATION TO BE 4224 02:34:03,360 --> 02:34:05,280 WITH YOU THIS AFTERNOON. 4225 02:34:05,280 --> 02:34:07,920 >> THANK YOU FOR THE GREAT 4226 02:34:07,920 --> 02:34:08,440 UPDATE. 4227 02:34:08,440 --> 02:34:09,680 THINGS ARE CHANGING LITERALLY 4228 02:34:09,680 --> 02:34:10,880 HOUR BY HOUR. 4229 02:34:10,880 --> 02:34:12,760 THANK YOU FOR JOINING US. 4230 02:34:12,760 --> 02:34:20,080 DOES ANYONE HAVE ANY QUESTIONS? 4231 02:34:20,080 --> 02:34:22,200 I THINK YOU GUYS DID A GREAT 4232 02:34:22,200 --> 02:34:24,360 JOB, YOU COVERED EVERYTHING. 4233 02:34:24,360 --> 02:34:25,600 WE'RE ALL LOOKING FORWARD TO 4234 02:34:25,600 --> 02:34:27,320 HEARING UPDATES ON THIS. 4235 02:34:27,320 --> 02:34:28,520 THANK YOU FOR JOINING US. 4236 02:34:28,520 --> 02:34:29,240 >> THANK YOU. 4237 02:34:29,240 --> 02:34:31,360 FEEL FREE TO REACH OUT. 4238 02:34:31,360 --> 02:34:33,520 OUR E-MAILS ARE IN OUR SLIDES. 4239 02:34:33,520 --> 02:34:37,200 I QUICKLY WANTED TO FOLLOW UP ON 4240 02:34:37,200 --> 02:34:37,880 VICKIE'S EARLIER QUESTION, 4241 02:34:37,880 --> 02:34:39,520 VICKIE, OUR TEAM AND I KNOW 4242 02:34:39,520 --> 02:34:42,920 AMY'S TEAM ARE HAPPY TO SET UP A 4243 02:34:42,920 --> 02:34:43,680 FOLLOW-UP CONVERSATION TO TALK 4244 02:34:43,680 --> 02:34:46,280 MORE ABOUT THE STAR ACT 4245 02:34:46,280 --> 02:34:47,960 IMPLEMENTATION EFFORTS. 4246 02:34:47,960 --> 02:34:53,920 I DON'T WANT TO VOLUNTEER EMILY. 4247 02:34:53,920 --> 02:34:55,040 BUT IF GROUPS WOULD BE 4248 02:34:55,040 --> 02:34:59,520 INTERESTED IN HAVING SOME SORT 4249 02:34:59,520 --> 02:35:00,520 OF BRIEFING FOR CONGRESSIONAL 4250 02:35:00,520 --> 02:35:01,800 STAFF OUR COLLEAGUES WOULD BE 4251 02:35:01,800 --> 02:35:03,760 HAPPY TO PARTICIPATE. 4252 02:35:03,760 --> 02:35:05,560 KEEP US POSTED. 4253 02:35:05,560 --> 02:35:06,200 >> PERFECT. 4254 02:35:06,200 --> 02:35:13,400 WE WILL FOLLOW UP OFFLINE TO 4255 02:35:13,400 --> 02:35:15,240 MAKE THAT HAPPEN. 4256 02:35:15,240 --> 02:35:15,600 >> EXCELLENT. 4257 02:35:15,600 --> 02:35:19,240 THANK YOU FOR JOINING US. 4258 02:35:19,240 --> 02:35:21,360 WE HAVE A BREAK. 4259 02:35:21,360 --> 02:35:24,440 WE HAVE TIME FOR A 10-MINUTE 4260 02:35:24,440 --> 02:35:25,200 BREAK. 4261 02:35:25,200 --> 02:35:29,400 IF EVERYONE COULD REJOIN THE 4262 02:35:29,400 --> 02:35:34,000 ZOOM AT 2:45 EASTERN TIME, 1:45 4263 02:35:34,000 --> 02:35:37,000 CENTRAL, THAT WOULD BE GREAT. 4264 02:35:37,000 --> 02:35:39,320 >>IN SEPTEMBER NCRA TALKED ABOUT 4265 02:35:39,320 --> 02:35:41,240 JUST HOW EXCEPTIONAL OUR 4266 02:35:41,240 --> 02:35:43,880 RESEARCH ADVOCACY PROGRAMS WERE 4267 02:35:43,880 --> 02:35:48,840 AND THAT WE HAD WORKED WITH 4268 02:35:48,840 --> 02:35:50,440 COLLEAGUES WITH RESEARCH 4269 02:35:50,440 --> 02:35:51,120 ADVOCACY. 4270 02:35:51,120 --> 02:36:00,400 I'M DELIGHTED WE COULD 4271 02:36:00,400 --> 02:36:05,640 HIGHLIGHTING EXCELLENT PROGRAMS. 4272 02:36:05,640 --> 02:36:06,840 WE HAVE THREE WONDERFUL GROUPS 4273 02:36:06,840 --> 02:36:10,440 JOINING US TO SHARE THEIR 4274 02:36:10,440 --> 02:36:14,720 EFFORTS IN TRAINING RESEARCH 4275 02:36:14,720 --> 02:36:15,560 ADVOCATES, ADDRESSING 4276 02:36:15,560 --> 02:36:17,600 SUSTAINABILITY, EVOLUTION OF 4277 02:36:17,600 --> 02:36:18,760 PROGRAMS, LESSONS LEARNED, AND 4278 02:36:18,760 --> 02:36:22,600 SO I'M REALLY EXCITED TO 4279 02:36:22,600 --> 02:36:32,360 INTRODUCE OUR SPEAKERS, SARAH 4280 02:36:32,360 --> 02:36:39,960 MILBERG, NANCY LENFESTEY, BRIAN 4281 02:36:39,960 --> 02:36:41,600 HOHMAN, AND MICHELE TREGEAR, 4282 02:36:41,600 --> 02:36:44,320 NATIONAL BREAST CANCER 4283 02:36:44,320 --> 02:36:49,120 COALITION. 4284 02:36:49,120 --> 02:36:52,200 FIRST UP WE HAVE SAINT BALDRICK. 4285 02:36:52,200 --> 02:36:54,160 >> WE'RE SO THRILLED TO BE 4286 02:36:54,160 --> 02:36:57,120 INCLUDED IN THIS, TO BE WELCOMED 4287 02:36:57,120 --> 02:37:02,720 AND AMONG SUCH GREAT COLLEAGUES 4288 02:37:02,720 --> 02:37:06,800 TALKING ABOUT RESEARCH ADVOCACY. 4289 02:37:06,800 --> 02:37:10,560 WE'RE HERE TO TALK ABOUT 4290 02:37:10,560 --> 02:37:12,120 CREATING ADVOCATES THROUGH 4291 02:37:12,120 --> 02:37:13,160 RESEARCH EDUCATION, CARE 4292 02:37:13,160 --> 02:37:16,240 TRAINING PROGRAM. 4293 02:37:16,240 --> 02:37:17,120 NEXT SLIDE. 4294 02:37:17,120 --> 02:37:19,400 THE FOUNDATION IS THE LARGEST 4295 02:37:19,400 --> 02:37:21,920 NON-GOVERNMENT FUNDER OF 4296 02:37:21,920 --> 02:37:24,960 CHILDHOOD CANCER RESEARCH 4297 02:37:24,960 --> 02:37:28,360 GRANTS, FIRST EVENT IN ONE, WE 4298 02:37:28,360 --> 02:37:30,200 HAVE RAISED OVER $300 MILLION 4299 02:37:30,200 --> 02:37:32,360 FOR CHILDHOOD CANCER RESEARCH 4300 02:37:32,360 --> 02:37:32,800 GRANTS AND COUNTING. 4301 02:37:32,800 --> 02:37:35,840 A LOT OF HOW DOLLARS COME TO BE 4302 02:37:35,840 --> 02:37:37,800 IS THROUGH HEAD SHAVING, MARCH 4303 02:37:37,800 --> 02:37:40,160 IS OUR BIGGEST MONTH, IT GOES 4304 02:37:40,160 --> 02:37:42,120 WELL WITH THE FOUNDING ON ST. 4305 02:37:42,120 --> 02:37:42,840 PATRICK'S DAY. 4306 02:37:42,840 --> 02:37:45,760 SO IF YOU'RE INTERESTED IN 4307 02:37:45,760 --> 02:37:51,200 CELEBRATING WE'RE GETTING READY 4308 02:37:51,200 --> 02:37:51,960 NEXT WEEK AND SUPPORT 6,000 4309 02:37:51,960 --> 02:37:54,560 CANCER FAMILIES AND FOR THE LAST 4310 02:37:54,560 --> 02:37:56,560 7 YEARS HAVE BEEN CO-CHAIR OF 4311 02:37:56,560 --> 02:37:58,360 THE ALLIANCE FOR CHILDHOOD 4312 02:37:58,360 --> 02:38:00,600 CANCER, THE COALITION OF MORE 4313 02:38:00,600 --> 02:38:03,160 THAN 20 NATIONAL ORGANIZATIONS 4314 02:38:03,160 --> 02:38:04,560 WORKING ON POLICY AND I'M GOING 4315 02:38:04,560 --> 02:38:11,080 TO TURN THINGS OVER TO NANCY TO 4316 02:38:11,080 --> 02:38:11,640 TALK THROUGH THE PROGRAM. 4317 02:38:11,640 --> 02:38:12,760 >> NEXT SLIDE PLEASE. 4318 02:38:12,760 --> 02:38:14,240 THE CARE TRAINING PROGRAM IS 4319 02:38:14,240 --> 02:38:19,280 MADE POSSIBLE BY A GRANT FROM 4320 02:38:19,280 --> 02:38:22,240 BAYER HEALTH CARE FOUNDATION, TO 4321 02:38:22,240 --> 02:38:23,680 TRAINED AND INTEGRATE PATIENTS, 4322 02:38:23,680 --> 02:38:25,120 SURVIVORS, CAREGIVERS INTO THE 4323 02:38:25,120 --> 02:38:26,320 RESEARCH PROCESS TO ENSURE THAT 4324 02:38:26,320 --> 02:38:29,360 THE NEEDS OF THIS GROUP ARE 4325 02:38:29,360 --> 02:38:29,920 ACCOUNTED FOR. 4326 02:38:29,920 --> 02:38:32,360 HISTORICALLY THE PATIENT AND 4327 02:38:32,360 --> 02:38:34,240 FAMILY PERSPECTIVES HASN'T BEEN 4328 02:38:34,240 --> 02:38:36,240 WELL INTEGRATED, AND THIS CAN BE 4329 02:38:36,240 --> 02:38:38,560 ATTRIBUTED IN PART TO PATIENT 4330 02:38:38,560 --> 02:38:40,120 AND CAREGIVER FEELINGS OF 4331 02:38:40,120 --> 02:38:43,360 INADEQUACY ON SOME LEVEL. 4332 02:38:43,360 --> 02:38:48,040 IT'S NOT UNCOMMON TO FEEL THEIR 4333 02:38:48,040 --> 02:38:49,800 OPINIONS ARE NOT IMPORTANT OR 4334 02:38:49,800 --> 02:38:51,120 THEY ARE NOT QUALIFIED BECAUSE 4335 02:38:51,120 --> 02:38:56,480 THEY LACK SKILLS AND KNOWLEDGE 4336 02:38:56,480 --> 02:38:57,400 TO UNDERSTAND RESEARCH. 4337 02:38:57,400 --> 02:38:59,880 FIRST HAND EXPERIENCE, MY SON 4338 02:38:59,880 --> 02:39:02,320 WAS DIAGNOSED WITH LEUKEMIA WHEN 4339 02:39:02,320 --> 02:39:05,800 HE WAS 3, AND ORDINARILY I WOULD 4340 02:39:05,800 --> 02:39:06,520 CONSIDER MYSELF SOMEBODY WHO 4341 02:39:06,520 --> 02:39:09,560 DOES RESEARCH AHEAD OF TIME, 4342 02:39:09,560 --> 02:39:10,720 COMES PREPARED, AND HAD I KNOWN 4343 02:39:10,720 --> 02:39:12,680 HE WAS GOING TO BE DIAGNOSED 4344 02:39:12,680 --> 02:39:15,120 WITH CANCER I WOULD HAVE HAD MY 4345 02:39:15,120 --> 02:39:16,280 HANDS ON EVERY JOURNAL ARTICLE I 4346 02:39:16,280 --> 02:39:18,560 COULD GET AND WOULD HAVE 4347 02:39:18,560 --> 02:39:20,720 DEVELOPED A REALLY LONG LIST OF 4348 02:39:20,720 --> 02:39:21,800 QUESTIONS. 4349 02:39:21,800 --> 02:39:22,440 BUT UNFORTUNATELY THE MAJORITY 4350 02:39:22,440 --> 02:39:25,240 OF PEOPLE DON'T HAVE THAT LUXURY 4351 02:39:25,240 --> 02:39:27,200 WHEN THEY GET A CANCER 4352 02:39:27,200 --> 02:39:27,960 DIAGNOSIS, IT WAS OVERWHELMING 4353 02:39:27,960 --> 02:39:37,160 TO BE THRUST INTO THIS NEW WORLD 4354 02:39:37,160 --> 02:39:38,400 OF TERMINOLOGY, DRUG NAMES, 4355 02:39:38,400 --> 02:39:39,120 DISCUSSION ABOUT RESEARCH AND 4356 02:39:39,120 --> 02:39:42,200 CLINICAL TRIALS, I FOUND IT 4357 02:39:42,200 --> 02:39:42,800 INTIMIDATING, FELT LIKE I DID 4358 02:39:42,800 --> 02:39:44,880 NOT HAVE INFORMATION I NEEDED TO 4359 02:39:44,880 --> 02:39:46,480 BE ABLE TO HAVE AN IN-DEPTH 4360 02:39:46,480 --> 02:39:47,600 DISCUSSION ABOUT THESE THINGS 4361 02:39:47,600 --> 02:39:50,560 EARLY IN MY SON'S TREATMENT. 4362 02:39:50,560 --> 02:39:54,360 THIS IS SOMETHING THAT SAINT 4363 02:39:54,360 --> 02:40:00,080 BALD RICK'S WANTS TO CHANGE, 4364 02:40:00,080 --> 02:40:09,160 TRAINING RESEARCH ADVOCATES WHO 4365 02:40:09,160 --> 02:40:11,040 UNDERSTAND PEDIATRIC DRUG 4366 02:40:11,040 --> 02:40:11,440 DEVELOPMENT. 4367 02:40:11,440 --> 02:40:14,280 BY PROVIDING A FOUNDATION OF 4368 02:40:14,280 --> 02:40:16,800 TERMINOLOGY AND PROCESS, OUR 4369 02:40:16,800 --> 02:40:32,280 HOPE IS TO MITIGATE FEELINGS OF 4370 02:40:32,280 --> 02:40:32,760 INTIMIDATION. 4371 02:40:32,760 --> 02:40:38,480 IT CAN HELP EQUIP THEM TO SERVE 4372 02:40:38,480 --> 02:40:40,480 AS RESEARCH ADVOCATES, BY 4373 02:40:40,480 --> 02:40:41,840 BRINGING FIRST HAND EXPERIENCE 4374 02:40:41,840 --> 02:40:46,880 WITH CANCER TO THE TABLE. 4375 02:40:46,880 --> 02:40:49,280 NEXT SLIDE PLEASE. 4376 02:40:49,280 --> 02:40:52,000 IN TERMS OF PROGRAM DEVELOPMENT 4377 02:40:52,000 --> 02:40:55,360 FOUR MAIN STAGES, PROGRAM, 4378 02:40:55,360 --> 02:40:56,040 STRUCTURE IDENTIFICATION, 4379 02:40:56,040 --> 02:40:58,240 CURRICULUM DEVELOPMENT, RESOURCE 4380 02:40:58,240 --> 02:41:00,200 GUIDE REFINEMENT, ONLINE CONTENT 4381 02:41:00,200 --> 02:41:00,560 TRANSFER. 4382 02:41:00,560 --> 02:41:05,960 AND THEN TESTING AND PROGRAM 4383 02:41:05,960 --> 02:41:07,800 ROLLOUT. 4384 02:41:07,800 --> 02:41:10,240 WE CONDUCTED A SEARCH FOR 4385 02:41:10,240 --> 02:41:11,440 EXISTING TRAINING PROGRAMS, AND 4386 02:41:11,440 --> 02:41:15,960 WE DID FIND SOME EXISTED AND 4387 02:41:15,960 --> 02:41:17,480 WERE GREAT PROGRAMS LIKE THOSE 4388 02:41:17,480 --> 02:41:19,360 OF FELLOW PANELIST HERE'S TODAY 4389 02:41:19,360 --> 02:41:21,200 BUT WE ALSO NOTICED THEY WERE 4390 02:41:21,200 --> 02:41:25,160 PRIMARILY GEARED TOWARDS CANCER 4391 02:41:25,160 --> 02:41:26,360 IN ADULTS. 4392 02:41:26,360 --> 02:41:28,880 WE WANTED TO A DEVELOP CHILDHOOD 4393 02:41:28,880 --> 02:41:30,720 CANCER FOCUSED THAT HIGHLIGHTED 4394 02:41:30,720 --> 02:41:32,440 TOPICS AND ISSUES THAT WERE 4395 02:41:32,440 --> 02:41:34,320 UNIQUE TO CHILDHOOD CANCER IN 4396 02:41:34,320 --> 02:41:35,600 OUR NICHE COMMUNITY. 4397 02:41:35,600 --> 02:41:37,160 SO WE FORMED AN ADVISORY 4398 02:41:37,160 --> 02:41:38,320 COMMITTEE AT THE BEGINNING TO 4399 02:41:38,320 --> 02:41:40,960 HELP INFORM DEVELOPMENT OF THE 4400 02:41:40,960 --> 02:41:43,240 CURRICULUM, AND YOU SEE THE 4401 02:41:43,240 --> 02:41:45,960 MEMBERS HERE, INCLUDING A MIX OF 4402 02:41:45,960 --> 02:41:47,920 RESEARCHERS, CLINICIANS, PARENTS 4403 02:41:47,920 --> 02:41:53,200 OF KIDS WITH CANCER. 4404 02:41:53,200 --> 02:41:54,600 NEXT SLIDE PLEASE. 4405 02:41:54,600 --> 02:41:59,480 WE IDENTIFIED THESE 12 KEY TOPIC 4406 02:41:59,480 --> 02:42:01,760 AREAS, AND NEITHER ONE OF US IS 4407 02:42:01,760 --> 02:42:04,600 REALLY CONCERNED ABOUT HAVING A 4408 02:42:04,600 --> 02:42:06,600 GOAL REGARDING QUANTITY OR THE 4409 02:42:06,600 --> 02:42:09,240 NUMBER OF ADVOCATES TRAINED. 4410 02:42:09,240 --> 02:42:11,280 WE WERE CONCERNED ABOUT THE 4411 02:42:11,280 --> 02:42:13,000 QUALITY OF THE CONTENT. 4412 02:42:13,000 --> 02:42:20,000 SO WE AIMED TO DEVELOP A PRETTY 4413 02:42:20,000 --> 02:42:22,200 SUBSTANTIVE TRAINING, LIKE 4414 02:42:22,200 --> 02:42:23,040 BIOMARKERS AND GENOMICS AND 4415 02:42:23,040 --> 02:42:26,680 PRECISION MEDICINE. 4416 02:42:26,680 --> 02:42:27,880 NEXT SLIDE PLEASE. 4417 02:42:27,880 --> 02:42:28,840 INITIALLY THE CARE TRAINING 4418 02:42:28,840 --> 02:42:32,560 PROGRAM WAS GOING TO CONSIST OF 4419 02:42:32,560 --> 02:42:36,040 IN PERSON TRAINING, FLY IN 10 TO 4420 02:42:36,040 --> 02:42:40,560 12 PEOPLE FOR A DAYLONG SESSION 4421 02:42:40,560 --> 02:42:42,640 WITH SPEAKERS, SO MANY THINGS IN 4422 02:42:42,640 --> 02:42:45,120 THE LAST TWO YEARS COVID HAD 4423 02:42:45,120 --> 02:42:46,760 OTHER PLANS. 4424 02:42:46,760 --> 02:42:50,360 WE PIVOTED AND DECIDED ON A TWO 4425 02:42:50,360 --> 02:42:52,160 PRONGED APPROACH THAT INCLUDES 4426 02:42:52,160 --> 02:42:53,960 ONLINE TRAINING WITH 12 MODULES 4427 02:42:53,960 --> 02:42:57,360 IN THE PREVIOUS SLIDE AND ALSO 4428 02:42:57,360 --> 02:42:58,480 COMPREHENSIVE RESOURCE GUIDE 4429 02:42:58,480 --> 02:42:59,960 THAT ADVOCATES COULD REFER TO 4430 02:42:59,960 --> 02:43:06,320 AFTER THE TRAINING FOR 4431 02:43:06,320 --> 02:43:08,360 REINFORCEMENT. 4432 02:43:08,360 --> 02:43:10,560 ULTIMATELY THAT MODEL ALLOWED 4433 02:43:10,560 --> 02:43:14,360 MANY MORE TO PARTICIPATE, IT'S 4434 02:43:14,360 --> 02:43:15,480 MORE CONVENIENT AND ECONOMICAL 4435 02:43:15,480 --> 02:43:18,760 AND BASICALLY DOESN'T CRAM 4436 02:43:18,760 --> 02:43:24,760 EVERYTHING INTO ONE DAYLONG 4437 02:43:24,760 --> 02:43:24,960 SESSION. 4438 02:43:24,960 --> 02:43:31,680 WE ALSO PUT A TREMENDOUS AMOUNT 4439 02:43:31,680 --> 02:43:37,560 OF CONSIDERATION SO IT OPTIMIZES 4440 02:43:37,560 --> 02:43:38,440 COMPREHENSION AND RETENTION, 4441 02:43:38,440 --> 02:43:39,840 INTO THE RESOURCE GUIDE AS A 4442 02:43:39,840 --> 02:43:48,560 FIRST STEP SO ALL THE 4443 02:43:48,560 --> 02:43:49,760 INFORMATION WAS EASILY 4444 02:43:49,760 --> 02:43:52,760 ACCESSIBLE AND BEGAN DEVELOPING 4445 02:43:52,760 --> 02:43:54,200 POWERPOINT SLIDES. 4446 02:43:54,200 --> 02:43:54,920 TRAINING COVERS INFORMATION AND 4447 02:43:54,920 --> 02:43:57,760 A NUMBER OF COMPLEX TOPICS 4448 02:43:57,760 --> 02:43:58,640 DIFFICULT TO ABSORB. 4449 02:43:58,640 --> 02:44:03,360 WE SPENT A LOT OF TIME LOOKING 4450 02:44:03,360 --> 02:44:10,040 AT DIFFERENT DESIGN ELEMENTS, 4451 02:44:10,040 --> 02:44:11,920 USING ANIMATION, GRAPHICS, 4452 02:44:11,920 --> 02:44:14,280 CONTRASTING COLOR SCHEMES TO 4453 02:44:14,280 --> 02:44:15,760 DIGEST INFORMATION MORE EASILY. 4454 02:44:15,760 --> 02:44:17,360 SINCE SOME PEOPLE TEND TO BE 4455 02:44:17,360 --> 02:44:19,680 MORE AUDITORY RATHER THAN VISUAL 4456 02:44:19,680 --> 02:44:23,520 LEARNERS, WE WORKED WITH A 4457 02:44:23,520 --> 02:44:24,920 PROFESSIONAL VOICEOVER NARRATION 4458 02:44:24,920 --> 02:44:32,760 FORM TO RECORD MODULES, WE WENT 4459 02:44:32,760 --> 02:44:34,200 THROUGH TRAINING OURSELVES AND 4460 02:44:34,200 --> 02:44:36,760 WE EACH RECORDED A MODULE. 4461 02:44:36,760 --> 02:44:39,160 AND WE PURPOSELY SELECTED THOSE 4462 02:44:39,160 --> 02:44:42,240 MODULES MOST LIKELY TO NEED 4463 02:44:42,240 --> 02:44:43,760 UPDATING AS NEW DISCOVERIES 4464 02:44:43,760 --> 02:44:48,560 EMERGED WITH RESEARCH. 4465 02:44:48,560 --> 02:44:49,760 NEXT SLIDE. 4466 02:44:49,760 --> 02:44:52,480 LAST STEP IN FINALIZING RESOURCE 4467 02:44:52,480 --> 02:44:55,480 GUIDE WE SENT FOR REVIEW TO A 4468 02:44:55,480 --> 02:44:57,720 SCIENTIFIC WRITER FOR EDITING. 4469 02:44:57,720 --> 02:45:00,360 WE HAD PEOPLE CONTRIBUTE TO 4470 02:45:00,360 --> 02:45:03,560 DEVELOPMENT OF CONTENT AND 4471 02:45:03,560 --> 02:45:04,720 WANTED A SINGULAR VOICE. 4472 02:45:04,720 --> 02:45:05,920 AND MAKE SURE THE CONTENT WAS 4473 02:45:05,920 --> 02:45:13,720 WRITTEN IN A WAY THAT COULD BE 4474 02:45:13,720 --> 02:45:20,360 UNDERSTOOD BY LAY AUDIENCE. 4475 02:45:20,360 --> 02:45:23,560 WE UPLOADED POWERPOINT SLIDES AS 4476 02:45:23,560 --> 02:45:27,120 VIDEO FILES, AND ALSO 4477 02:45:27,120 --> 02:45:28,360 CUSTOMIZATION, ADDING QUIZZES AT 4478 02:45:28,360 --> 02:45:30,200 THE END, DEVELOPING A 4479 02:45:30,200 --> 02:45:36,240 CERTIFICATE OF COMPLETION FOR 4480 02:45:36,240 --> 02:45:37,080 GRADUATES. 4481 02:45:37,080 --> 02:45:39,360 SINCE WE'RE NOT ABLE TO SHARE 4482 02:45:39,360 --> 02:45:41,960 LIVE DEMO TODAY WE'VE INCLUDED 4483 02:45:41,960 --> 02:45:43,760 SCREEN SHOTS OF THE RESOURCE 4484 02:45:43,760 --> 02:45:46,120 GUIDE, LOOK AT HOW THE QUIZ 4485 02:45:46,120 --> 02:45:47,760 QUESTIONS ARE FORMATTED, AND 4486 02:45:47,760 --> 02:45:49,760 ANOTHER EXAMPLE OF USING 4487 02:45:49,760 --> 02:45:50,840 DIFFERENT DESIGN ELEMENTS TO 4488 02:45:50,840 --> 02:45:54,800 SEGMENT THE CONTENT INTO MORE 4489 02:45:54,800 --> 02:45:56,960 MANAGEABLE AMOUNTS OF 4490 02:45:56,960 --> 02:45:57,880 INFORMATION. 4491 02:45:57,880 --> 02:45:58,720 RESOURCE GUIDE HAS MORE 4492 02:45:58,720 --> 02:46:01,560 INFORMATION, MORE DETAIL THAN 4493 02:46:01,560 --> 02:46:06,000 WHAT WE COULD INCLUDE IN THE 4494 02:46:06,000 --> 02:46:08,800 SLIDES, 120 PAGES LONG, INCLUDES 4495 02:46:08,800 --> 02:46:09,520 A GLOSSARY. 4496 02:46:09,520 --> 02:46:11,160 THIS IS A PRIORITY FOR US TO 4497 02:46:11,160 --> 02:46:13,760 MAKE SURE OUR CONTENT WAS WELL 4498 02:46:13,760 --> 02:46:14,640 SUBSTANTIATED. 4499 02:46:14,640 --> 02:46:21,320 SO WE ENDED UP INCLUDING 290 4500 02:46:21,320 --> 02:46:21,600 REFERENCES. 4501 02:46:21,600 --> 02:46:23,400 WE WERE CONSCIOUS ABOUT KEEPING 4502 02:46:23,400 --> 02:46:25,840 LENGTH TO A REASONABLE LENGTH, 4503 02:46:25,840 --> 02:46:28,880 IN TOTAL IT TAKES 4 HOURS TO 4504 02:46:28,880 --> 02:46:29,560 COMPLETE OUR TRAINING. 4505 02:46:29,560 --> 02:46:31,560 THAT'S A LOT FOR ONE SITTING. 4506 02:46:31,560 --> 02:46:32,720 WHICH IS WHY WE DON'T RECOMMEND 4507 02:46:32,720 --> 02:46:37,720 PEOPLE DO IT IN ONE SITTING. 4508 02:46:37,720 --> 02:46:38,720 IF THE CONTENT WAS GOING TO TAKE 4509 02:46:38,720 --> 02:46:41,080 MORE THAN 20 MINUTES OR SO PER 4510 02:46:41,080 --> 02:46:43,840 TOPIC, THAT WE WOULD DIVIDE THAT 4511 02:46:43,840 --> 02:46:48,640 INTO TWO VIDEOS, JUST FOR 4512 02:46:48,640 --> 02:46:49,840 ATTENTION SPAN PURPOSES. 4513 02:46:49,840 --> 02:46:52,720 I FIND QUIZZES KEEP ME ON MY 4514 02:46:52,720 --> 02:46:52,920 TOES. 4515 02:46:52,920 --> 02:46:54,760 WE HAVE QUIZZES AT THE END OF 4516 02:46:54,760 --> 02:46:57,520 EACH MODULE LIKE I MENTIONED 4517 02:46:57,520 --> 02:46:58,160 PREVIOUSLY. 4518 02:46:58,160 --> 02:46:59,200 ADVOCATES MUST SCORE 80% OR 4519 02:46:59,200 --> 02:47:04,200 HIGHER BEFORE MOVING TO THE NEXT 4520 02:47:04,200 --> 02:47:04,440 MODULE. 4521 02:47:04,440 --> 02:47:07,560 WE VIEWED QUIZZES AS MORE OF AN 4522 02:47:07,560 --> 02:47:09,600 OPPORTUNITY FOR REINFORCEMENT 4523 02:47:09,600 --> 02:47:10,760 RATHER THAN A PENALTY. 4524 02:47:10,760 --> 02:47:14,400 IF SOMEBODY GOT A QUESTION 4525 02:47:14,400 --> 02:47:15,680 INCORRECT THEY WOULDN'T SEE THE 4526 02:47:15,680 --> 02:47:17,760 CORRECT LETTER CHOICE BUT WOULD 4527 02:47:17,760 --> 02:47:20,080 SEE AN EXPLANATION OF THE 4528 02:47:20,080 --> 02:47:23,160 CORRECT ANSWER WITH CONTEXT THAT 4529 02:47:23,160 --> 02:47:26,040 THEY COULD RE-READ AND READ 4530 02:47:26,040 --> 02:47:27,160 BEFORE RETAKING THE QUIZ. 4531 02:47:27,160 --> 02:47:30,720 WE DO NOT LIMIT OF NUMBERING OF 4532 02:47:30,720 --> 02:47:34,600 QUIZ ATTEMPTS. 4533 02:47:34,600 --> 02:47:35,520 NEXT SLIDE. 4534 02:47:35,520 --> 02:47:36,800 WE CONDUCTED TESTING IN THE 4535 02:47:36,800 --> 02:47:39,520 FALL, LAUNCHED THE PROGRAM WITH 4536 02:47:39,520 --> 02:47:41,360 THE FIRST COHORT, VERY NEW 4537 02:47:41,360 --> 02:47:41,600 PROGRAM. 4538 02:47:41,600 --> 02:47:44,080 WE'VE HAD TWO ROUNDS OF 4539 02:47:44,080 --> 02:47:46,000 GRADUATES SO FAR. 4540 02:47:46,000 --> 02:47:48,200 13 IN THE FIRST COHORT, 18 IN 4541 02:47:48,200 --> 02:47:49,400 THE SECOND. 4542 02:47:49,400 --> 02:47:51,800 SECOND COHORT JUST FINISHED 4543 02:47:51,800 --> 02:47:53,920 TRAINING LAST WEEK. 4544 02:47:53,920 --> 02:47:55,880 IT HAS BEEN INVITATION ONLY FOR 4545 02:47:55,880 --> 02:47:57,080 THE FIRST TWO ROUNDS AND THEY 4546 02:47:57,080 --> 02:48:00,040 ARE GIVEN ABOUT A MONTH TO 4547 02:48:00,040 --> 02:48:01,120 COMPLETE THE TRAINING AND THEN 4548 02:48:01,120 --> 02:48:04,080 THEY CAN DO THAT ON THEIR OWN 4549 02:48:04,080 --> 02:48:04,560 SCHEDULE. 4550 02:48:04,560 --> 02:48:05,800 ONCE THEY COMPLETE THE TRAINING 4551 02:48:05,800 --> 02:48:07,560 THEY RECEIVE AN E-MAIL WITH A 4552 02:48:07,560 --> 02:48:10,240 LINK TO A SURVEY. 4553 02:48:10,240 --> 02:48:12,200 WE REVIEW THE SURVEY FEEDBACK 4554 02:48:12,200 --> 02:48:13,360 AND MAKE CHANGES AS NEEDED SO 4555 02:48:13,360 --> 02:48:15,520 THAT WE CAN CONTINUE TO IMPROVE 4556 02:48:15,520 --> 02:48:22,920 THE PROGRAM WITH EACH ROLLOUT. 4557 02:48:22,920 --> 02:48:26,120 FEEDBACK HAS BEEN POSITIVE. 4558 02:48:26,120 --> 02:48:28,360 WE'VE HEARD TRAINING IS 4559 02:48:28,360 --> 02:48:29,960 COMPREHENSIVE, EASY TO NAVIGATE, 4560 02:48:29,960 --> 02:48:31,720 THERE'S APPROPRIATE LEVEL OF 4561 02:48:31,720 --> 02:48:37,440 DETAIL, AND NARRATION HAS BEEN 4562 02:48:37,440 --> 02:48:38,040 HELPFUL AND RETAINING 4563 02:48:38,040 --> 02:48:38,360 INFORMATION. 4564 02:48:38,360 --> 02:48:41,600 THE GUIDE WILL BE A HANDY TOOL 4565 02:48:41,600 --> 02:48:42,760 FOR FUTURE REVIEW. 4566 02:48:42,760 --> 02:48:45,560 WHAT STOOD OUT MOST TO ME WAS 4567 02:48:45,560 --> 02:48:48,960 ADVOCATE WHO SAID THIS IS REALLY 4568 02:48:48,960 --> 02:48:50,960 A LOT OF INFORMATION, BUT 4569 02:48:50,960 --> 02:48:52,800 KNOWLEDGE IS POWER. 4570 02:48:52,800 --> 02:48:54,600 AND I THINK THAT ENCAPSULATES 4571 02:48:54,600 --> 02:48:56,600 LARGELY WHAT WE WERE AIMING FOR 4572 02:48:56,600 --> 02:48:58,360 WITH THE PROGRAM, WHICH IS 4573 02:48:58,360 --> 02:49:00,200 EMPOWERMENT OF PATIENTS AND 4574 02:49:00,200 --> 02:49:03,760 CAREGIVERS IN THE RESEARCH 4575 02:49:03,760 --> 02:49:04,680 PROCESS. 4576 02:49:04,680 --> 02:49:05,840 NEXT SLIDE. 4577 02:49:05,840 --> 02:49:06,800 CARE TRAINING PROGRAM REALLY 4578 02:49:06,800 --> 02:49:08,160 MEANS A LOT TO US NOT JUST 4579 02:49:08,160 --> 02:49:10,520 BECAUSE OF THE TIME AND EFFORT 4580 02:49:10,520 --> 02:49:12,360 WE PUT INTO THIS BUT BECAUSE 4581 02:49:12,360 --> 02:49:13,680 THERE'S BEEN A NEED FOR PROGRAM 4582 02:49:13,680 --> 02:49:16,320 LIKE THIS FOR A WHILE NOW IN THE 4583 02:49:16,320 --> 02:49:17,640 CHILDHOOD CANCER COMMUNITY. 4584 02:49:17,640 --> 02:49:19,560 IT'S BEEN A REALLY WONDERFUL AND 4585 02:49:19,560 --> 02:49:20,480 REWARDING EXPERIENCE TO BE ABLE 4586 02:49:20,480 --> 02:49:26,920 TO BRING THIS TO FRUITION. 4587 02:49:26,920 --> 02:49:32,760 THANK YOU. 4588 02:49:32,760 --> 02:49:34,360 >> NEXT WE HAVE RYAN. 4589 02:49:34,360 --> 02:49:36,000 >> THANK YOU FOR ORGANIZING 4590 02:49:36,000 --> 02:49:36,200 THIS. 4591 02:49:36,200 --> 02:49:38,160 I'VE BEEN ABLE TO LISTEN TO MOST 4592 02:49:38,160 --> 02:49:41,840 OF THE DAY, I APPRECIATE THE 4593 02:49:41,840 --> 02:49:47,160 INVITE TO SPEAK AND LISTEN. 4594 02:49:47,160 --> 02:49:54,080 I THANK DR. SHARPLESS FOR BEING 4595 02:49:54,080 --> 02:49:56,360 STRAIGHTFORWARD AND REFERRING TO 4596 02:49:56,360 --> 02:49:59,840 DR. SHARPLESS, REFERRING TO DR. 4597 02:49:59,840 --> 02:50:02,040 TABAK HAVING A RESPECT FOR ALL. 4598 02:50:02,040 --> 02:50:04,440 I COULDN'T AGREE MORE, WHAT 4599 02:50:04,440 --> 02:50:08,080 WE'RE TALKING ABOUT, PATIENT 4600 02:50:08,080 --> 02:50:09,920 EDUCATION AND EMPOWERMENT IS 4601 02:50:09,920 --> 02:50:11,360 DRIVING TOWARDS THAT 4602 02:50:11,360 --> 02:50:12,520 ENVIRONMENT, INCLUSIVE 4603 02:50:12,520 --> 02:50:13,960 ENVIRONMENT FOR ALL IN RESEARCH, 4604 02:50:13,960 --> 02:50:19,080 IN OUR CASES THROUGH EDUCATION. 4605 02:50:19,080 --> 02:50:22,000 MOST OF YOU KNOW FRIENDS OF 4606 02:50:22,000 --> 02:50:22,960 CANCER RESEARCH. 4607 02:50:22,960 --> 02:50:26,000 I THINK ABOUT A THIRD TO HALF 4608 02:50:26,000 --> 02:50:27,960 MAYBE OF ALL OF YOU HAVE 4609 02:50:27,960 --> 02:50:28,920 EXPERIENCED PROGRESS FOR 4610 02:50:28,920 --> 02:50:31,240 PATIENTS IN SOME WAY THROUGH 4611 02:50:31,240 --> 02:50:33,760 FORMAL OR INFORMAL PARTNERSHIPS, 4612 02:50:33,760 --> 02:50:35,400 THANK YOU FOR THOSE PARTNERSHIPS 4613 02:50:35,400 --> 02:50:38,360 OVER THE MANY YEARS, PROGRESS 4614 02:50:38,360 --> 02:50:39,720 FOR PATIENTS, NEXT SLIDE PLEASE. 4615 02:50:39,720 --> 02:50:43,480 WE'VE BEEN AROUND FOR SIX YEARS. 4616 02:50:43,480 --> 02:50:44,760 THIS WAS AN OFFSHOOT, STILL 4617 02:50:44,760 --> 02:50:50,960 PARTS OF OUR CORE MISSION 4618 02:50:50,960 --> 02:50:53,640 THROUGH THE WORK IN THE 4619 02:50:53,640 --> 02:50:55,360 REGULATORY ENVIRONMENT, 4620 02:50:55,360 --> 02:50:57,920 PRIMARILY WITH FDA, COMPANIES, 4621 02:50:57,920 --> 02:51:00,560 ALL THOSE WHO BUILD, ADDRESS, 4622 02:51:00,560 --> 02:51:02,600 AND EXECUTE CLINICAL TRIALS. 4623 02:51:02,600 --> 02:51:04,240 WHAT WE WERE FINDING OURSELVES 4624 02:51:04,240 --> 02:51:07,200 AT FRIENDS DOING IS GIVINGS 4625 02:51:07,200 --> 02:51:09,520 ONE-OFF PRESENTATIONS TO LARGER 4626 02:51:09,520 --> 02:51:10,360 COMPANIES, TO LARGER 4627 02:51:10,360 --> 02:51:12,240 ORGANIZATIONS, TO SMALLER GROUPS 4628 02:51:12,240 --> 02:51:13,240 OF ORGANIZATIONS, ABOUT THE 4629 02:51:13,240 --> 02:51:15,760 IMPORTANCE OF THE FDA AND HOW 4630 02:51:15,760 --> 02:51:16,840 REALLY PATIENTS COULD GET 4631 02:51:16,840 --> 02:51:17,960 INVOLVED BECAUSE FOR MANY YEARS 4632 02:51:17,960 --> 02:51:21,560 EVEN FOR US HERE AT FRIENDS, 25 4633 02:51:21,560 --> 02:51:23,080 YEARS OLD NOW, BUT FDA WAS THIS 4634 02:51:23,080 --> 02:51:24,200 BLACK BOX. 4635 02:51:24,200 --> 02:51:27,240 I KNOW TO A LOT OF PATIENTS AND 4636 02:51:27,240 --> 02:51:28,400 THEIR ADVOCATES AND CAREGIVERS 4637 02:51:28,400 --> 02:51:30,720 FDA IS CERTAINLY A BLACK BOX, 4638 02:51:30,720 --> 02:51:32,160 ESPECIALLY AT THE TIME OF 4639 02:51:32,160 --> 02:51:34,000 DIAGNOSIS AND YOU'RE STARTING TO 4640 02:51:34,000 --> 02:51:35,960 TALK ABOUT, OKAY, I NEED TO LOOK 4641 02:51:35,960 --> 02:51:37,120 AT WHAT CLINICAL TRIALS ARE 4642 02:51:37,120 --> 02:51:38,080 AVAILABLE TO ME. 4643 02:51:38,080 --> 02:51:40,280 SO WHAT WE TOOK A STEP BACK AND 4644 02:51:40,280 --> 02:51:44,440 LOOKED AT TO SAY WAS HOW CAN 4645 02:51:44,440 --> 02:51:49,080 FRIENDS WITH OUR EXPERTISE NOT 4646 02:51:49,080 --> 02:51:49,880 BEING DUPLICATIVE CREATE A 4647 02:51:49,880 --> 02:51:51,280 RESOURCE FOR FRIENDS AND 4648 02:51:51,280 --> 02:51:53,360 PARTNERS IN THE ADVOCACY 4649 02:51:53,360 --> 02:51:54,000 COMMUNITY. 4650 02:51:54,000 --> 02:51:56,520 WE CREATED THROUGH A LOT OF 4651 02:51:56,520 --> 02:51:59,680 RESEARCH PROGRESS FOR PATIENTS 4652 02:51:59,680 --> 02:52:01,960 .ORG, OPEN FREE ACCESS, ONLINE 4653 02:52:01,960 --> 02:52:06,360 LEARNING PLATFORM. 4654 02:52:06,360 --> 02:52:07,960 IT'S A SELF-GUIDED PLATFORM. 4655 02:52:07,960 --> 02:52:10,520 OUR PARTNERS AT SAINT BALDRICK'S 4656 02:52:10,520 --> 02:52:12,400 SAYING EVERYONE LEARNS AT THEIR 4657 02:52:12,400 --> 02:52:14,760 PACE, MINUTE AMOUNTS OF TIME 4658 02:52:14,760 --> 02:52:16,160 HERE AND THERE, SO THIS IS AS 4659 02:52:16,160 --> 02:52:17,840 SOON AS YOU'RE REGISTERED 4660 02:52:17,840 --> 02:52:18,920 THROUGH THE PROCESS, START AND 4661 02:52:18,920 --> 02:52:21,360 STOP AS YOU PLEASE. 4662 02:52:21,360 --> 02:52:24,760 YOU CAN RETURN TO WHERE YOU LEFT 4663 02:52:24,760 --> 02:52:25,000 OFF. 4664 02:52:25,000 --> 02:52:29,040 WE WANTED TO MAKE THIS EASY FOR 4665 02:52:29,040 --> 02:52:35,560 INDIVIDUALS OF ALL EDUCATION LEVELS. 4666 02:52:35,560 --> 02:52:37,520 WE'VE HAD ANYTHING FROM A 4667 02:52:37,520 --> 02:52:38,040 PATIENT JUST DIAGNOSED AND 4668 02:52:38,040 --> 02:52:40,160 OFFERED A CLINICAL TRIAL THAT 4669 02:52:40,160 --> 02:52:41,240 WANTED TO TAKE THE COURSE QUICK 4670 02:52:41,240 --> 02:52:42,360 BECAUSE THEY HAD A DECISION TO 4671 02:52:42,360 --> 02:52:48,080 BE MADE THE NEXT DAY, TO TRAINED 4672 02:52:48,080 --> 02:52:48,600 QUOTE/UNQUOTE PROFESSIONAL 4673 02:52:48,600 --> 02:52:49,480 PATIENT ADVOCATES LIKE SOME OF 4674 02:52:49,480 --> 02:52:51,360 US ON THIS CALL. 4675 02:52:51,360 --> 02:52:54,240 WE'VE HAD PARTNERSHIPS WITH MANY 4676 02:52:54,240 --> 02:52:55,760 OF YOUR ORGANIZATIONS, I'LL PICK 4677 02:52:55,760 --> 02:52:59,800 ANJEE OUT, THE CHAIR OF THIS 4678 02:52:59,800 --> 02:53:03,720 COMMITTEE, A LONGSTANDING 4679 02:53:03,720 --> 02:53:07,000 COLLABORATION WITH COLORECTAL 4680 02:53:07,000 --> 02:53:08,680 CANCER THAT HAS ALLOWED THEM TO 4681 02:53:08,680 --> 02:53:10,640 UTILIZE PROGRESS FOR PATIENTS 4682 02:53:10,640 --> 02:53:12,360 FOR THE EXTRA REGULATORY 4683 02:53:12,360 --> 02:53:13,920 CLINICAL TRIALS COMPONENT. 4684 02:53:13,920 --> 02:53:16,840 SO, THE GOALS HERE ARE REALLY 4685 02:53:16,840 --> 02:53:18,560 UNDERSTANDING OF DRUG 4686 02:53:18,560 --> 02:53:20,160 DEVELOPMENT AND REGULATORY 4687 02:53:20,160 --> 02:53:22,360 PROCESS AND GUIDELINES AND 4688 02:53:22,360 --> 02:53:23,200 EVERYTHING AROUND THOSE 4689 02:53:23,200 --> 02:53:23,960 PROCESSES. 4690 02:53:23,960 --> 02:53:25,840 BECAUSE AS WE ALL KNOW, THESE 4691 02:53:25,840 --> 02:53:27,240 DISCUSSIONS THAT ARE BEING HAD, 4692 02:53:27,240 --> 02:53:29,760 WHETHER THEY ARE AT, YOU KNOW, 4693 02:53:29,760 --> 02:53:30,960 ONCOLOGY DRUG ADVISORY COMMITTEE 4694 02:53:30,960 --> 02:53:33,600 IN THE FDA OR AROUND THE TABLE 4695 02:53:33,600 --> 02:53:35,560 LIKE THIS, ESPECIALLY IN 4696 02:53:35,560 --> 02:53:37,640 WASHINGTON WHERE I SIT, ACRONYMS 4697 02:53:37,640 --> 02:53:39,120 START FLYING, DIFFERENT WORDS 4698 02:53:39,120 --> 02:53:40,480 START TO MELD TOGETHER INTO ONE 4699 02:53:40,480 --> 02:53:42,320 GIANT BLOB AS PEOPLE ARE TALKING 4700 02:53:42,320 --> 02:53:43,760 TO YOU. 4701 02:53:43,760 --> 02:53:45,360 WE REALLY WANTED AND THOUGHT IT 4702 02:53:45,360 --> 02:53:47,360 WAS OUR DUTY TO HAVE PATIENTS AS 4703 02:53:47,360 --> 02:53:50,080 EQUIPPED AS POSSIBLE TO 4704 02:53:50,080 --> 02:53:51,160 UNDERSTAND THESE THINGS, EMPOWER 4705 02:53:51,160 --> 02:53:52,800 THEM TO SAY STOP, NIGHT TO ASK A 4706 02:53:52,800 --> 02:53:53,560 QUESTION HERE. 4707 02:53:53,560 --> 02:53:55,440 BUT MAKE SURE THEY ARE THE MOST 4708 02:53:55,440 --> 02:53:57,960 EQUIPPED AS POSSIBLE GOING INTO 4709 02:53:57,960 --> 02:53:58,360 THE CONVERSATIONS. 4710 02:53:58,360 --> 02:54:00,240 JUST SO THEY FEEL A COMFORT 4711 02:54:00,240 --> 02:54:01,360 LEVEL OF UNDERSTANDING BEFORE 4712 02:54:01,360 --> 02:54:02,920 THEY EVEN STEP FOOT INTO THE 4713 02:54:02,920 --> 02:54:05,640 ROOM OR VIRTUAL ROOM LIKE THIS. 4714 02:54:05,640 --> 02:54:08,040 THE KEY TERMINOLOGY IS SOMETHING 4715 02:54:08,040 --> 02:54:10,440 THAT WE'VE REALLY HAMMERED HOME 4716 02:54:10,440 --> 02:54:12,120 THROUGHOUT PROGRESS FOR 4717 02:54:12,120 --> 02:54:12,840 PATIENTS, SUPPLEMENTARY 4718 02:54:12,840 --> 02:54:14,320 COMPONENTS WE'VE PUT OUT SINCE, 4719 02:54:14,320 --> 02:54:16,040 AND WITHIN THE TRAINING THAT WE 4720 02:54:16,040 --> 02:54:17,760 DO WITH INDIVIDUALS AS THEY ARE 4721 02:54:17,760 --> 02:54:19,680 BEING PLACED WITHIN SOME OF 4722 02:54:19,680 --> 02:54:20,880 THESE PROGRAMS. 4723 02:54:20,880 --> 02:54:22,160 THE BASELINE KNOWLEDGE OF THE 4724 02:54:22,160 --> 02:54:25,560 CLINICAL TRIAL DESIGN REALLY 4725 02:54:25,560 --> 02:54:28,600 FROM THE REGULATORY PERSPECTIVE 4726 02:54:28,600 --> 02:54:30,160 AND THROUGH TO STATISTICS, NOT 4727 02:54:30,160 --> 02:54:32,080 GETTING INTO THE NUANCES HERE 4728 02:54:32,080 --> 02:54:33,960 BUT WE WANTED PATIENTS TO HAVE 4729 02:54:33,960 --> 02:54:35,960 THAT LEVEL OF UNDERSTANDING THAT 4730 02:54:35,960 --> 02:54:37,520 IF THEY WERE IN CONVERSATIONS, 4731 02:54:37,520 --> 02:54:40,120 SAY WITH A COMPANY EARLY ON IN 4732 02:54:40,120 --> 02:54:42,760 PROTOCOL DEVELOPMENT, THEY COULD 4733 02:54:42,760 --> 02:54:43,560 AT LEAST UNDERSTAND WHERE 4734 02:54:43,560 --> 02:54:45,160 STATISTICS COME INTO PLAY, ET 4735 02:54:45,160 --> 02:54:46,720 CETERA, BECAUSE OUR GOAL HERE 4736 02:54:46,720 --> 02:54:49,560 ALL ALONG WAS TO EMPOWER AND 4737 02:54:49,560 --> 02:54:51,080 EDUCATE PATIENTS BUT ALSO 4738 02:54:51,080 --> 02:54:52,840 PROVIDE THEM WITH THE 4739 02:54:52,840 --> 02:54:54,080 OPPORTUNITIES THAT ARE AVAILABLE 4740 02:54:54,080 --> 02:54:56,760 SO THEIR INPUT CAN CHANGE THE 4741 02:54:56,760 --> 02:54:58,360 FACE OF DRUG DEVELOPMENT AND 4742 02:54:58,360 --> 02:55:01,000 CLINICAL TRIAL DEVELOPMENT. 4743 02:55:01,000 --> 02:55:01,800 NEXT SLIDE. 4744 02:55:01,800 --> 02:55:06,120 SO WHAT YOU SEE HERE IS THE 4745 02:55:06,120 --> 02:55:07,360 OPENING AND OUR COLLEAGUES SAID, 4746 02:55:07,360 --> 02:55:10,720 WITHOUT BEING ABLE TO SHOW YOU 4747 02:55:10,720 --> 02:55:12,760 THE ACTUAL -- I ENCOURAGE YOU TO 4748 02:55:12,760 --> 02:55:18,680 SIGN UP FOR FREE AT 4749 02:55:18,680 --> 02:55:19,760 PROGRESSFORPATIENTS.ORG TO TAKE 4750 02:55:19,760 --> 02:55:20,280 A LOOK. 4751 02:55:20,280 --> 02:55:22,480 WE'RE OPEN TO CREATING BRANDED 4752 02:55:22,480 --> 02:55:23,360 PARTNERSHIPS WITH OTHER 4753 02:55:23,360 --> 02:55:24,320 ORGANIZATIONS AS WELL, TOTALLY 4754 02:55:24,320 --> 02:55:25,320 FREE OF CHARGE. 4755 02:55:25,320 --> 02:55:26,720 THIS PROGRAM LIKE ALL PROGRAMS 4756 02:55:26,720 --> 02:55:28,480 AT FRIENDS OF CANCER RESEARCH IS 4757 02:55:28,480 --> 02:55:32,160 100% FREE OF CHARGE TO ANYONE IN 4758 02:55:32,160 --> 02:55:35,040 THE PUBLIC, ESPECIALLY IN TH 4759 02:55:35,040 --> 02:55:35,560 ADVOCACY COMMUNITY. 4760 02:55:35,560 --> 02:55:38,200 THESE ARE THE FOUR MODULES. 4761 02:55:38,200 --> 02:55:41,200 TIME FOR THE TOTAL TO COMPLETION 4762 02:55:41,200 --> 02:55:42,960 AVERAGES ABOUT 2 HOURS, 4763 02:55:42,960 --> 02:55:45,760 OBVIOUSLY THERE'S EXTREME 4764 02:55:45,760 --> 02:55:47,680 OUTLIERS ON BOTH SIDES. 4765 02:55:47,680 --> 02:55:49,320 WE'VE HEARD 90 MINUTES IF YOU 4766 02:55:49,320 --> 02:55:51,320 SIT DOWN AND DRIVE THROUGH 4767 02:55:51,320 --> 02:55:51,680 STRAIGHTFORWARD. 4768 02:55:51,680 --> 02:55:53,480 IT'S FAIRLY BRIEF. 4769 02:55:53,480 --> 02:55:54,440 THERE ARE QUIZZES THROUGHOUT, 4770 02:55:54,440 --> 02:55:57,400 JUST MORE FROM A CHECK-IN 4771 02:55:57,400 --> 02:55:59,200 PERSPECTIVE MAKING SURE THE 4772 02:55:59,200 --> 02:56:01,000 INDIVIDUALS ARE UNDERSTANDING 4773 02:56:01,000 --> 02:56:03,120 THAT IT'S KIND OF A ONE GUESS, 4774 02:56:03,120 --> 02:56:05,040 THEN THE NEXT GUESS TELLS YOU 4775 02:56:05,040 --> 02:56:05,760 THE ANSWER, DESCRIBES WHY THE 4776 02:56:05,760 --> 02:56:08,920 ANSWER IS WHAT IT IS, IT'S A 4777 02:56:08,920 --> 02:56:09,560 REINFORCING STRUCTURE, NOTHING 4778 02:56:09,560 --> 02:56:11,960 THAT IS LIKE REQUIRED TO MOVE ON 4779 02:56:11,960 --> 02:56:15,200 TO THE NEXT STEP NECESSARILY. 4780 02:56:15,200 --> 02:56:18,280 I WON'T GO IN DEPTH WHAT EACH 4781 02:56:18,280 --> 02:56:19,400 MODULE IS. 4782 02:56:19,400 --> 02:56:21,360 THEY ARE STRAIGHTFORWARD AS FAR 4783 02:56:21,360 --> 02:56:22,240 AS LABELING. 4784 02:56:22,240 --> 02:56:24,880 ADVOCACY AND ACTION SIDE OF 4785 02:56:24,880 --> 02:56:27,160 THINGS IS REALLY AS THE ADVOCATE 4786 02:56:27,160 --> 02:56:29,440 OR PATIENT OR CAREGIVER IS DONE 4787 02:56:29,440 --> 02:56:31,800 WITH THE COURSE GIVING THEM 4788 02:56:31,800 --> 02:56:32,960 JUMPING-OFF POINTS, SEEING WHERE 4789 02:56:32,960 --> 02:56:36,360 ADVOCATES HAVE CHANGED THE FACE 4790 02:56:36,360 --> 02:56:37,680 OF CANCER RESEARCH, OTHER 4791 02:56:37,680 --> 02:56:38,160 RESEARCH. 4792 02:56:38,160 --> 02:56:39,280 THIS IS CANCER FOCUSED. 4793 02:56:39,280 --> 02:56:41,360 WE'VE HAD SO MANY PARTNERS 4794 02:56:41,360 --> 02:56:44,160 OUTSIDE OF JUST ONCOLOGY TAKING 4795 02:56:44,160 --> 02:56:45,720 THIS COURSE. 4796 02:56:45,720 --> 02:56:47,560 CANCER IS A CASE STUDY LIKE AT 4797 02:56:47,560 --> 02:56:49,200 FRIENDS OF CANCER RESEARCH FOR 4798 02:56:49,200 --> 02:56:52,440 OUR SCIENCE AND POLICY PROGRAMS. 4799 02:56:52,440 --> 02:56:57,160 IT FOLLOWS THAT SUIT. 4800 02:56:57,160 --> 02:56:59,880 NEXT SLIDE. 4801 02:56:59,880 --> 02:57:02,840 AFTER FIVE YEARS, NOW SIXTH 4802 02:57:02,840 --> 02:57:05,480 YEAR, EDUCATED OVER 500 PATIENTS 4803 02:57:05,480 --> 02:57:07,000 AND ADVOCATES, MORE THAN 50% 4804 02:57:07,000 --> 02:57:09,600 HAVE GONE TO PARTICIPATE IN A 4805 02:57:09,600 --> 02:57:11,240 DRUG DEVELOPMENT CLINICAL TRIAL 4806 02:57:11,240 --> 02:57:12,040 REGULATORY PROCESS AFTER TAKING 4807 02:57:12,040 --> 02:57:15,320 THE COURSE, I'LL TOUCH ON THAT 4808 02:57:15,320 --> 02:57:17,520 IN THE NEXT SLIDE. 4809 02:57:17,520 --> 02:57:19,240 70% CAME THROUGH EXISTING 4810 02:57:19,240 --> 02:57:20,760 PARTNERSHIPS WITH PATIENT 4811 02:57:20,760 --> 02:57:22,120 ADVOCACY ORGANIZATIONS, AS I 4812 02:57:22,120 --> 02:57:23,440 DESCRIBED BEFORE. 4813 02:57:23,440 --> 02:57:27,240 WE CREATED THIS AS A TOOL AND 4814 02:57:27,240 --> 02:57:29,760 THAT TOOL CONTINUES TO SHALL AND 4815 02:57:29,760 --> 02:57:34,040 CREATE INTERESTING AND UNIQUE 4816 02:57:34,040 --> 02:57:34,560 PARTNERSHIPS. 4817 02:57:34,560 --> 02:57:35,880 WE'VE HAD PHILANTHROPIC BOARDS 4818 02:57:35,880 --> 02:57:37,320 OF FOUNDATIONS HAVE THEIR ENTIRE 4819 02:57:37,320 --> 02:57:39,400 BOARD OF DIRECTORS TAKE THIS 4820 02:57:39,400 --> 02:57:41,760 COURSE SO THEY UNDERSTAND WHEN 4821 02:57:41,760 --> 02:57:44,840 THEY ARE DELVING OUT GRANTS, 4822 02:57:44,840 --> 02:57:45,560 REALLY UNDERSTANDING THE 4823 02:57:45,560 --> 02:57:46,720 PROCESSES, REALLY SURPRISING AND 4824 02:57:46,720 --> 02:57:48,000 INTERESTING TO SPEAK TO THAT 4825 02:57:48,000 --> 02:57:50,160 BOARD AFTER THEY WENT THROUGH 4826 02:57:50,160 --> 02:57:51,040 THIS COURSE. 4827 02:57:51,040 --> 02:57:52,040 AND HOW MANY INDIVIDUALS HAD 4828 02:57:52,040 --> 02:57:56,120 KIND OF BEEN IN THE SPACE, 4829 02:57:56,120 --> 02:57:57,080 PHILANTHROPIC ONCOLOGY RESEARCH 4830 02:57:57,080 --> 02:57:58,840 SPACE FOR A WHILE, BUT THAT THEY 4831 02:57:58,840 --> 02:58:01,360 LEARNED SO MUCH AND IT GAVE THEM 4832 02:58:01,360 --> 02:58:02,880 A BETTER PERSPECTIVE, THEY SAID, 4833 02:58:02,880 --> 02:58:06,760 HOW THEY DELVE OUT GRANTS AND 4834 02:58:06,760 --> 02:58:08,680 OTHER FUNDING. 4835 02:58:08,680 --> 02:58:09,120 NEXT SLIDE. 4836 02:58:09,120 --> 02:58:11,080 HERE'S WHAT I WOULD SAY IS THE 4837 02:58:11,080 --> 02:58:12,160 BREAD AND BUTTER. 4838 02:58:12,160 --> 02:58:15,160 OTHER THAN LIKE THE NUMBER ONE 4839 02:58:15,160 --> 02:58:19,640 OF LIKE EDUCATION AND THE 4840 02:58:19,640 --> 02:58:20,960 OPPORTUNITY TO EMPOWER AND 4841 02:58:20,960 --> 02:58:22,000 EDUCATE PATIENTS, THAT'S ALL 4842 02:58:22,000 --> 02:58:24,600 THEY WANT AND GET, THAT'S 4843 02:58:24,600 --> 02:58:26,280 EXCEPTIONAL, A HUGE WIN, IN OUR 4844 02:58:26,280 --> 02:58:26,600 MINDS. 4845 02:58:26,600 --> 02:58:27,600 FOR THOSE ADVOCATES WHICH TURNS 4846 02:58:27,600 --> 02:58:30,200 OUT AS YOU SAW FROM THE LAST 4847 02:58:30,200 --> 02:58:31,200 STATISTIC USUALLY IS MOST THAT 4848 02:58:31,200 --> 02:58:34,280 THEY ARE EMPOWERED AND WANTING 4849 02:58:34,280 --> 02:58:36,720 TO PROVIDE INPUT OR LEARN MORE 4850 02:58:36,720 --> 02:58:38,120 OR UNDERSTAND WHAT OPPORTUNITIES 4851 02:58:38,120 --> 02:58:41,760 ARE OUT THERE, WE PROVIDE 4852 02:58:41,760 --> 02:58:43,240 ADVOCATE MATCHMAKING SERVICE 4853 02:58:43,240 --> 02:58:45,160 WHEREAS WHETHER IT'S ANOTHER 4854 02:58:45,160 --> 02:58:48,280 ORGANIZATION, A PRIVATE COMPANY, 4855 02:58:48,280 --> 02:58:50,360 FDA, NCI, PARTNERS AT THE NCI 4856 02:58:50,360 --> 02:58:53,760 AND NIH, AS WELL AS SOME UNIQUE 4857 02:58:53,760 --> 02:58:55,280 OTHER PUBLIC/PRIVATE 4858 02:58:55,280 --> 02:58:57,920 PARTNERSHIPS, THEY PROVIDE US 4859 02:58:57,920 --> 02:59:04,240 WITH THE TYPES THEY ARE LOOKING 4860 02:59:04,240 --> 02:59:05,880 FOR AND PROVIDE A MATCH-MAKING 4861 02:59:05,880 --> 02:59:10,400 SERVICE TO THOSE WHO QUALIFY. 4862 02:59:10,400 --> 02:59:11,080 IT'S BEEN INCREDIBLY SUCCESSFUL 4863 02:59:11,080 --> 02:59:13,160 AND AS NONE OF US ON THIS CALL 4864 02:59:13,160 --> 02:59:15,600 WOULD BE SURPRISED BUT SOME ARE 4865 02:59:15,600 --> 02:59:16,080 ALWAYS SURPRISED, SOME 4866 02:59:16,080 --> 02:59:17,560 COMPANIES, THAT THEY HAVE A VERY 4867 02:59:17,560 --> 02:59:20,080 SPECIFIC TYPE OF PATIENT THEY 4868 02:59:20,080 --> 02:59:23,480 ARE LOOKING FOR, IT COULD BE 4869 02:59:23,480 --> 02:59:27,400 MUST BE WEEKS OR WEEKS OF 4870 02:59:27,400 --> 02:59:28,480 INVOLVEMENT, 20, 30 INDIVIDUALS 4871 02:59:28,480 --> 02:59:29,800 SAYING THEY WANT TO PARTICIPATE 4872 02:59:29,800 --> 02:59:30,640 IN THIS. 4873 02:59:30,640 --> 02:59:31,960 WHAT YOU'RE SEEING ON THE SCREEN 4874 02:59:31,960 --> 02:59:33,480 ARE THE DIFFERENT TYPES OF 4875 02:59:33,480 --> 02:59:34,640 OPPORTUNITIES THAT WE'VE PLACED 4876 02:59:34,640 --> 02:59:36,680 PEOPLE AT. 4877 02:59:36,680 --> 02:59:39,840 YOU'RE SEEING PROTOCOL DESIGN, 4878 02:59:39,840 --> 02:59:41,040 CLINICAL TRIAL RESOURCES, 4879 02:59:41,040 --> 02:59:43,760 BARRIERS, WORK WE'VE HAD 4880 02:59:43,760 --> 02:59:46,080 PATIENTS EMBEDDED REALLY EARLY 4881 02:59:46,080 --> 02:59:47,560 ON IN RESEARCH DEVELOPMENT, AT A 4882 02:59:47,560 --> 02:59:50,040 COMPANY OR CLINICAL TRIAL 4883 02:59:50,040 --> 02:59:51,840 DEVELOPMENT, WHERE THEY CAN 4884 02:59:51,840 --> 02:59:52,800 ACTUALLY CHANGE THE FUTURE OF 4885 02:59:52,800 --> 02:59:53,480 THE TRIAL. 4886 02:59:53,480 --> 02:59:56,280 LIKE PATIENTS ARE THE MOST 4887 02:59:56,280 --> 02:59:57,400 SCARCE RESOURCE WE HAVE IN 4888 02:59:57,400 --> 02:59:58,840 CLINICAL TRIALS, AND IF YOU'RE 4889 02:59:58,840 --> 02:59:59,840 CREATING A TRIAL THAT NO PATIENT 4890 02:59:59,840 --> 03:00:02,120 WANTS TO GO ON IT'S NOT GOING TO 4891 03:00:02,120 --> 03:00:04,160 BE SUCCESSFUL. 4892 03:00:04,160 --> 03:00:06,560 SO THE EDUCATION TO COMPANIES 4893 03:00:06,560 --> 03:00:09,440 AND TO OTHER INSTITUTIONS 4894 03:00:09,440 --> 03:00:11,280 CONDUCTING CLINICAL TRIALS HAS 4895 03:00:11,280 --> 03:00:15,360 BEEN AN INCREDIBLY IMPORTANT 4896 03:00:15,360 --> 03:00:19,160 PART OF PROGRESS FOR 4897 03:00:19,160 --> 03:00:20,160 PATIENTS.ORG, COULDN'T HAVE 4898 03:00:20,160 --> 03:00:21,560 PREDICTED PRIOR HOW MUCH WE WERE 4899 03:00:21,560 --> 03:00:26,040 ABLE TO CHANGE AND BY WE I MEAN 4900 03:00:26,040 --> 03:00:27,280 THE ADVOCATES, PATIENTS, 4901 03:00:27,280 --> 03:00:28,160 CAREGIVERS, CHANGE CULTURE 4902 03:00:28,160 --> 03:00:29,440 WITHIN SOME OF THESE COMPANIES 4903 03:00:29,440 --> 03:00:31,160 OF HOW THEY LOOK AT PATIENT 4904 03:00:31,160 --> 03:00:34,160 INPUT AND WHEN THEY LOOK AT 4905 03:00:34,160 --> 03:00:38,400 PATIENT INPUT. 4906 03:00:38,400 --> 03:00:38,760 NEXT SLIDE. 4907 03:00:38,760 --> 03:00:40,600 ANJEE MENTIONED IN THE OPENING 4908 03:00:40,600 --> 03:00:42,800 FOR THE SECTION TALKING ABOUT 4909 03:00:42,800 --> 03:00:45,960 HOW DIFFERENT ORGANIZATIONS AND 4910 03:00:45,960 --> 03:00:48,320 THESE PROGRAMS HAVE EVOLVED. 4911 03:00:48,320 --> 03:00:49,960 I THINK THERE'S NO BETTER 4912 03:00:49,960 --> 03:00:53,240 EXAMPLE FOR US HERE AT FRIENDS, 4913 03:00:53,240 --> 03:00:55,960 IT'S A TOPIC ALL OF YOU US HERE 4914 03:00:55,960 --> 03:00:57,440 ARE WORKING TOWARDS IN THE 4915 03:00:57,440 --> 03:01:00,360 SHADOWS AND THE SUNLIGHT OF THE 4916 03:01:00,360 --> 03:01:01,920 RECENT SOCIAL JUSTICE MOVEMENT, 4917 03:01:01,920 --> 03:01:03,280 ACCESS AND EQUITY. 4918 03:01:03,280 --> 03:01:05,560 WE PARTNERED AND WERE LUCKY 4919 03:01:05,560 --> 03:01:12,680 ENOUGH TO PARTNER 1/2 YEARS AGO, 4920 03:01:12,680 --> 03:01:15,520 RIGHT-- 2 1/2 YEARS AGO, RIGHT 4921 03:01:15,520 --> 03:01:18,040 BEFORE COVID, IN SANTA MONICA, 4922 03:01:18,040 --> 03:01:19,240 CALIFORNIA, JANUARY OF 2020, A 4923 03:01:19,240 --> 03:01:26,560 LITTLE BIT OF A LAST HURRAH TRIP 4924 03:01:26,560 --> 03:01:28,560 BEFORE THE PANDEMIC, LAUNCHED 4925 03:01:28,560 --> 03:01:30,080 PROJECT TEACH, TRAINED EMPOWERED 4926 03:01:30,080 --> 03:01:32,600 ADVOCATES FOR COMMUNITY HEALTH 4927 03:01:32,600 --> 03:01:38,280 IS THE ACRONYM, FROM A PCORI 4928 03:01:38,280 --> 03:01:41,520 GRANT EMPOWERING BLACK WOMEN 4929 03:01:41,520 --> 03:01:42,600 SPECIFICALLY THROUGH EDUCATION 4930 03:01:42,600 --> 03:01:44,480 OUTREACH TO PARTNER IN AND 4931 03:01:44,480 --> 03:01:46,760 ENGAGE WITH RESEARCHERS. 4932 03:01:46,760 --> 03:01:47,760 WHAT WE'VE LEARNED THROUGH 4933 03:01:47,760 --> 03:01:51,080 PROGRESS FOR PATIENTS AND NOW 4934 03:01:51,080 --> 03:01:54,080 LEARNED FROM A YEAR AND A HALF 4935 03:01:54,080 --> 03:01:57,240 OF FOCUS GROUPS AND EDUCATION 4936 03:01:57,240 --> 03:02:00,520 COMPONENTS ACROSS THE COUNTRY 4937 03:02:00,520 --> 03:02:02,320 AND VIRTUALLY, LAUNCHING 4938 03:02:02,320 --> 03:02:03,800 SUBSEQUENTLY LAST YEAR THIS 4939 03:02:03,800 --> 03:02:05,040 PROGRAM WAS, NOT SURPRISING, 4940 03:02:05,040 --> 03:02:06,880 EVEN WHEN YOU TRY TO CREATE A 4941 03:02:06,880 --> 03:02:08,680 PROGRAM LIKE PROGRESS FOR 4942 03:02:08,680 --> 03:02:09,520 PATIENTS THAT'S ALL INCLUSIVE, 4943 03:02:09,520 --> 03:02:12,880 YOU CAN ONLY SPEAK TO SO MANY 4944 03:02:12,880 --> 03:02:15,960 USING THE SAME TONE. 4945 03:02:15,960 --> 03:02:17,720 AND USING THE SAME INFORMATION. 4946 03:02:17,720 --> 03:02:19,240 AND EXPECTING A DIFFERENT 4947 03:02:19,240 --> 03:02:19,480 OUTCOME. 4948 03:02:19,480 --> 03:02:22,080 WHAT WE DID BY PARTNERING WITH 4949 03:02:22,080 --> 03:02:23,960 BLACK WOMEN'S HEALTH IMPERATIVE 4950 03:02:23,960 --> 03:02:25,360 IS RECREATE PROGRESS FOR 4951 03:02:25,360 --> 03:02:27,440 PATIENTS, TORE THE WHOLE THING 4952 03:02:27,440 --> 03:02:30,000 DOWN, REBUILT FROM THE BASE, TO 4953 03:02:30,000 --> 03:02:32,160 FOCUS SPECIFICALLY ON BLACK 4954 03:02:32,160 --> 03:02:32,360 WOMEN. 4955 03:02:32,360 --> 03:02:36,840 AND THIS HAS BEEN SUCCESSFUL. 4956 03:02:36,840 --> 03:02:39,800 NOW, ALREADY TRAINING 100 4957 03:02:39,800 --> 03:02:42,680 EPPs, EMPOWERED PATIENT 4958 03:02:42,680 --> 03:02:45,000 PARTNERS, ACROSS THE COUNTRY, 4959 03:02:45,000 --> 03:02:46,160 SOCIOSOCIOECONOMIC DIVERSITY, 4960 03:02:46,160 --> 03:02:49,360 AGE DIVERSITY, WITHIN BLACK 4961 03:02:49,360 --> 03:02:51,240 WOMEN, AND WITH THIS HITTING AT 4962 03:02:51,240 --> 03:02:53,360 THE TIME, YOU KNOW, WE WENT LIVE 4963 03:02:53,360 --> 03:02:56,640 RIGHT AFTER KIND OF JUNE OF 4964 03:02:56,640 --> 03:02:57,960 2020, SOCIAL JUSTICE MOVEMENT, 4965 03:02:57,960 --> 03:02:59,600 AND THEN ESPECIALLY ONCE THE 4966 03:02:59,600 --> 03:03:01,040 VACCINES CAME OUT, WE SAW 4967 03:03:01,040 --> 03:03:02,640 SOMETHING FROM THIS PROGRAM THAT 4968 03:03:02,640 --> 03:03:04,840 WE NEVER COULD HAVE PREDICTED 4969 03:03:04,840 --> 03:03:06,800 OBVIOUSLY WITH THE PANDEMIC, BUT 4970 03:03:06,800 --> 03:03:08,680 WHAT THIS BECAME USEFUL TOOL 4971 03:03:08,680 --> 03:03:11,200 WITHIN THE BLACK COMMUNITY WAS 4972 03:03:11,200 --> 03:03:14,440 ABOUT EDUCATION OF CLINICAL 4973 03:03:14,440 --> 03:03:17,320 TRIALS, HOW THERAPIES AND 4974 03:03:17,320 --> 03:03:18,120 VACCINES ARE EVALUATED EVEN 4975 03:03:18,120 --> 03:03:21,680 DURING SOME OF THE PANDEMIC 4976 03:03:21,680 --> 03:03:22,760 TIMES, AND WITH BLACK WOMEN 4977 03:03:22,760 --> 03:03:24,840 BEING KIND OF THE CENTER OF THE 4978 03:03:24,840 --> 03:03:26,720 UNIVERSE OF HEALTH DECISIONS 4979 03:03:26,720 --> 03:03:28,120 WITHIN THEIR HOUSEHOLDS AND 4980 03:03:28,120 --> 03:03:30,200 COMMUNITIES, IT REALLY WAS AN 4981 03:03:30,200 --> 03:03:31,360 EMPOWERMENT TOOL FOR INDIVIDUALS 4982 03:03:31,360 --> 03:03:33,360 THAT WANTED TO GET OUT THERE AND 4983 03:03:33,360 --> 03:03:34,480 EDUCATE ABOUT CLINICAL TRIALS IN 4984 03:03:34,480 --> 03:03:36,960 GENERAL BUT ALSO TO TALK TO 4985 03:03:36,960 --> 03:03:40,800 THEIR BROTHERS, SISTERS, 4986 03:03:40,800 --> 03:03:41,840 MOTHERS, FATHERS, ABOUT WHAT HAD 4987 03:03:41,840 --> 03:03:43,800 HAPPENED ON THE OTHER SIDE OF 4988 03:03:43,800 --> 03:03:46,680 THE BLACK CURTAIN WITH THE FDA 4989 03:03:46,680 --> 03:03:48,440 IN GOING THROUGH EVEN THE 4990 03:03:48,440 --> 03:03:49,440 VACCINE DEVELOPMENT. 4991 03:03:49,440 --> 03:03:51,600 SO WHILE THIS, AGAIN, USES 4992 03:03:51,600 --> 03:03:54,240 CANCER AS A CASE STUDY, IT 4993 03:03:54,240 --> 03:03:55,960 SHOWED IF YOU CREATE A TOOL AND 4994 03:03:55,960 --> 03:03:58,840 DO IT IN THE RIGHT WAY, THE 4995 03:03:58,840 --> 03:03:59,960 OUTCOME YOU SHOULD HAVE TO BE 4996 03:03:59,960 --> 03:04:03,080 OPEN TO AND SHOULD BE OPEN TO, 4997 03:04:03,080 --> 03:04:05,080 LIKE AN EXCEPTIONAL ARRAY OF 4998 03:04:05,080 --> 03:04:06,800 BENEFIT THAT YOU DIDN'T EXPECT 4999 03:04:06,800 --> 03:04:07,440 BEFORE. 5000 03:04:07,440 --> 03:04:08,560 I'LL LEAVE IT THERE. 5001 03:04:08,560 --> 03:04:10,760 HAPPY TO ANSWER QUESTIONS. 5002 03:04:10,760 --> 03:04:12,920 WE'LL DIVE INTO SOME Q&A LET. 5003 03:04:12,920 --> 03:04:14,920 THANK YOU AGAIN FOR HAVING US 5004 03:04:14,920 --> 03:04:16,400 AND ALLOWING ME TO PRESENT THIS. 5005 03:04:16,400 --> 03:04:17,240 >> EXCELLENT. 5006 03:04:17,240 --> 03:04:19,160 THANK YOU, RYAN. 5007 03:04:19,160 --> 03:04:27,120 NEXT WE HAVE A BREAST CANCER 5008 03:04:27,120 --> 03:04:27,560 COALITION, MICHELLE. 5009 03:04:27,560 --> 03:04:30,160 >> ALL RIGHT. 5010 03:04:30,160 --> 03:04:35,760 5011 03:04:35,760 --> 03:04:39,360 IT'S A PLEASURE TO BE HERE TO 5012 03:04:39,360 --> 03:04:41,440 TALK ABOUT NBCC'S LONG HISTORY 5013 03:04:41,440 --> 03:04:43,360 OF ADVOCATE EDUCATION PROGRAMS. 5014 03:04:43,360 --> 03:04:46,200 I'VE BEEN WITH NBCC FOR FOUR 5015 03:04:46,200 --> 03:04:46,840 YEARS. 5016 03:04:46,840 --> 03:04:51,560 I'M ALSO A 13-YEAR BREAST CANCER 5017 03:04:51,560 --> 03:04:52,040 SURVIVOR. 5018 03:04:52,040 --> 03:04:55,720 JUST A FEW WORDS ABOUT NBCC TO 5019 03:04:55,720 --> 03:04:57,360 PUT THE EDUCATION THAT WE 5020 03:04:57,360 --> 03:04:59,120 PROVIDE INTO CONTEXT. 5021 03:04:59,120 --> 03:05:02,120 SINCE ITS FOUNDING IN 1991, NBCC 5022 03:05:02,120 --> 03:05:03,800 HAS HAD ONE MISSION. 5023 03:05:03,800 --> 03:05:06,400 THAT HAS BEEN TO END BREAST 5024 03:05:06,400 --> 03:05:06,760 CANCER. 5025 03:05:06,760 --> 03:05:12,560 AND WE DO THAT BY THREE MAIN 5026 03:05:12,560 --> 03:05:12,760 GOALS. 5027 03:05:12,760 --> 03:05:13,400 RESEARCH. 5028 03:05:13,400 --> 03:05:15,520 SO INCREASING FUNDING FOR 5029 03:05:15,520 --> 03:05:17,360 RESEARCH, AND PARTICIPATING IN 5030 03:05:17,360 --> 03:05:21,200 THAT RESEARCH TO ENSURE IT'S 5031 03:05:21,200 --> 03:05:22,640 HIGH QUALITY, PEER-REVIEWED 5032 03:05:22,640 --> 03:05:23,800 RESEARCH AND THAT FUNDING IS 5033 03:05:23,800 --> 03:05:24,920 WELL SPENT. 5034 03:05:24,920 --> 03:05:29,160 THAT'S A KEY GOAL OF OURS. 5035 03:05:29,160 --> 03:05:30,600 ANOTHER AREA IS INCREASING 5036 03:05:30,600 --> 03:05:35,080 ACCESS FOR ALL WOMEN AND MEN TO 5037 03:05:35,080 --> 03:05:36,800 HIGH QUALITY TREATMENT AND CARE 5038 03:05:36,800 --> 03:05:39,160 AND TO BREAST CANCER CLINICAL 5039 03:05:39,160 --> 03:05:39,520 TRIALS. 5040 03:05:39,520 --> 03:05:42,680 AND THEN THE THIRD PRIMARY GOAL 5041 03:05:42,680 --> 03:05:45,560 THAT WE WORK TOWARD IS 5042 03:05:45,560 --> 03:05:46,640 INCREASING THE INFLUENCE OF 5043 03:05:46,640 --> 03:05:49,200 WOMEN AND MEN WHO ARE LIVING 5044 03:05:49,200 --> 03:05:53,120 WITH BREAST CANCER AND OTHER 5045 03:05:53,120 --> 03:05:53,960 BREAST CANCER ACTIVISTS IN THE 5046 03:05:53,960 --> 03:05:59,520 DECISION MAKING THAT AFFECTS ALL 5047 03:05:59,520 --> 03:06:01,200 ISSUES SURROUNDING THE DISEASE. 5048 03:06:01,200 --> 03:06:02,920 MANY PEOPLE ASK WHY SHOULD 5049 03:06:02,920 --> 03:06:04,360 ADVOCATES BE AT THE TABLE? 5050 03:06:04,360 --> 03:06:07,120 WHAT WE WOULD SAY IS THAT'S 5051 03:06:07,120 --> 03:06:10,200 BECAUSE THEY HAVE NO AGENDA. 5052 03:06:10,200 --> 03:06:12,240 AND IN OUR -- EXCEPT FOR IN OUR 5053 03:06:12,240 --> 03:06:13,880 WORLD, TO END BREAST CANCER. 5054 03:06:13,880 --> 03:06:16,840 THERE'S NO OTHER REASON THAT 5055 03:06:16,840 --> 03:06:22,080 THEY PARTICIPATE. 5056 03:06:22,080 --> 03:06:23,840 NOT ADVANCEMENT OR FINANCIAL 5057 03:06:23,840 --> 03:06:25,360 GAIN, SIMPLY TO IMPROVE OUTCOMES 5058 03:06:25,360 --> 03:06:27,440 FOR PATIENTS. 5059 03:06:27,440 --> 03:06:29,520 AND THE ADVOCATE'S ROLE IN THE 5060 03:06:29,520 --> 03:06:31,600 PROCESS FROM OUR PERSPECTIVE IS 5061 03:06:31,600 --> 03:06:35,000 TO CHALLENGE, TO ASK THE HARD 5062 03:06:35,000 --> 03:06:36,280 QUESTIONS AS AN OUTSIDER, YOU 5063 03:06:36,280 --> 03:06:38,560 KNOW, AND WE CAN CHALLENGE THOSE 5064 03:06:38,560 --> 03:06:40,360 WITHIN THE SYSTEM. 5065 03:06:40,360 --> 03:06:43,560 WE'VE DONE IT MANY TIMES OVER 5066 03:06:43,560 --> 03:06:44,560 THE LONG HISTORY OF NBCC. 5067 03:06:44,560 --> 03:06:46,840 WE FEEL THAT'S A ROLE FOR 5068 03:06:46,840 --> 03:06:50,680 ADVOCATES TO TAKE. 5069 03:06:50,680 --> 03:06:52,120 WE CAN TAKE -- WE'RE NOT GOING 5070 03:06:52,120 --> 03:06:54,960 TO TAKE EVERYTHING WE HEAR FROM 5071 03:06:54,960 --> 03:06:57,560 THE SCIENTIFIC COMMUNITY FOR 5072 03:06:57,560 --> 03:06:58,040 GRANTED. 5073 03:06:58,040 --> 03:06:58,920 WE DON'T ASSUME BECAUSE SOMEONE 5074 03:06:58,920 --> 03:07:00,200 WELL KNOWN IS GIVING YOU A PIECE 5075 03:07:00,200 --> 03:07:01,600 OF INFORMATION THAT IT IS 5076 03:07:01,600 --> 03:07:03,560 NECESSARILY THE TRUTH. 5077 03:07:03,560 --> 03:07:10,600 OUR ROLE IS ALSO TO COLLABORATE 5078 03:07:10,600 --> 03:07:11,680 WITH RESEARCHERS ON ISSUES THAT 5079 03:07:11,680 --> 03:07:13,720 WILL MAKE A DIFFERENCE IN 5080 03:07:13,720 --> 03:07:14,200 PEOPLE'S LIVES. 5081 03:07:14,200 --> 03:07:16,280 WE'RE THERE TO EXPLAIN THE 5082 03:07:16,280 --> 03:07:17,080 ADVOCATE PERSPECTIVE. 5083 03:07:17,080 --> 03:07:18,160 IT'S WHAT WE OFFER. 5084 03:07:18,160 --> 03:07:20,480 WE'RE NOT THE SCIENTIST BUT CAN 5085 03:07:20,480 --> 03:07:21,960 OFFER AN ADVOCATE PERSPECTIVE. 5086 03:07:21,960 --> 03:07:24,680 AND THEN REPORT BACK TO OUR 5087 03:07:24,680 --> 03:07:26,040 CONSTITUENCIES, BROADLY, WHAT'S 5088 03:07:26,040 --> 03:07:30,760 HAPPENING IN THE WORLD OF BREAST 5089 03:07:30,760 --> 03:07:32,000 CANCER, WHERE ARE WE HELPING 5090 03:07:32,000 --> 03:07:32,560 MAKE A DIFFERENCE? 5091 03:07:32,560 --> 03:07:36,120 ONE OF THE MOST IMPORTANT ROLES 5092 03:07:36,120 --> 03:07:37,720 FOR ADVOCATES IS OVERSIGHT. 5093 03:07:37,720 --> 03:07:39,240 WE CALL THE LIKE IT IS. 5094 03:07:39,240 --> 03:07:41,560 WHEN WE SEE IF SOMETHING IS NOT 5095 03:07:41,560 --> 03:07:43,480 RIGHT, WE SPEAK OUT. 5096 03:07:43,480 --> 03:07:44,360 I THINK THAT'S SOMETHING 5097 03:07:44,360 --> 03:07:45,960 ADVOCATES HAVE TO BE EMPOWERED 5098 03:07:45,960 --> 03:07:48,280 TO DO. 5099 03:07:48,280 --> 03:07:48,600 NEXT SLIDE. 5100 03:07:48,600 --> 03:07:51,240 SO IN TERMS OF WHAT AN EDUCATED 5101 03:07:51,240 --> 03:07:53,640 ADVOCATE IS, WE SEE AN EDUCATED 5102 03:07:53,640 --> 03:07:56,800 ADVOCATE AS AN INDIVIDUAL WHO IS 5103 03:07:56,800 --> 03:07:59,640 RESPONSIBLE AND ACCOUNTABLE TO A 5104 03:07:59,640 --> 03:08:00,400 PATIENT CONSTITUENCY. 5105 03:08:00,400 --> 03:08:02,840 AND THIS IS OFTEN BY WAY OF 5106 03:08:02,840 --> 03:08:05,960 THEIR CONNECTION WITH A 5107 03:08:05,960 --> 03:08:07,000 PATIENT-LED OR PATIENT-CENTERED 5108 03:08:07,000 --> 03:08:10,040 ADVOCACY ORGANIZATION. 5109 03:08:10,040 --> 03:08:12,560 WE HAVE TO BE INFORMED ADVOCATE 5110 03:08:12,560 --> 03:08:15,160 AND REPORT BACK TO CONSTITUENCY 5111 03:08:15,160 --> 03:08:16,960 AND MAKE CERTAIN WE'RE ALWAYS 5112 03:08:16,960 --> 03:08:21,560 SPEAKING IN THAT CONTEXT. 5113 03:08:21,560 --> 03:08:22,800 SO, AN EDUCATEDDED A ADVOCATE 5114 03:08:22,800 --> 03:08:24,440 NEEDS TO BE PERSONAL AFFECTED BY 5115 03:08:24,440 --> 03:08:29,160 THE SPECIFIC DISEASE OR 5116 03:08:29,160 --> 03:08:29,440 CONDITION. 5117 03:08:29,440 --> 03:08:30,720 IN OUR OPINION, IT CANNOT BE 5118 03:08:30,720 --> 03:08:33,320 ABOUT YOUR OWN PERSONAL DISEASE. 5119 03:08:33,320 --> 03:08:35,160 OR YOUR OWN EXPERIENCE WITH THE 5120 03:08:35,160 --> 03:08:35,400 DISEASE. 5121 03:08:35,400 --> 03:08:40,640 IT HAS TO BE IN A BROADER 5122 03:08:40,640 --> 03:08:45,120 PERSPECTIVE THAT WHAT RESEARCH 5123 03:08:45,120 --> 03:08:46,920 ADVOCATES BRING TO THE TABLE 5124 03:08:46,920 --> 03:08:49,080 BECAUSE THEY ARE REPRESENTING A 5125 03:08:49,080 --> 03:08:49,440 CONSTITUENCY. 5126 03:08:49,440 --> 03:08:51,680 EQUALLY IMPORTANT, YOU MUST OR 5127 03:08:51,680 --> 03:08:54,400 WE BELIEVE ADVOCATES NEED TO BE 5128 03:08:54,400 --> 03:08:55,080 KNOWLEDGEABLE, TRAINED, AND NEED 5129 03:08:55,080 --> 03:08:58,240 TO BE COMPETENT IN THEIR ABILITY 5130 03:08:58,240 --> 03:08:59,960 TO PARTICIPATE IN THE 5131 03:08:59,960 --> 03:09:01,160 DECISION-MAKING PROCESS AROUND 5132 03:09:01,160 --> 03:09:04,480 SCIENCE AND MEDICINE. 5133 03:09:04,480 --> 03:09:06,080 NEXT SLIDE. 5134 03:09:06,080 --> 03:09:09,520 SO AS PART OF OUR ACTIVITIES, 5135 03:09:09,520 --> 03:09:14,520 NBCC DOES MANY THINGS, WE WORK 5136 03:09:14,520 --> 03:09:22,520 IN LARGE PART TO ENSUR ADVOCATES 5137 03:09:22,520 --> 03:09:24,680 HAVE SEATS IN RESEARCH, PUBLIC 5138 03:09:24,680 --> 03:09:28,080 POLICY, PUBLIC HEALTH, BUT IN 5139 03:09:28,080 --> 03:09:30,960 RETURN FOR THIS WE UNDERSTAND 5140 03:09:30,960 --> 03:09:33,720 ADVOCATES NEED TO BE EDUCATED, 5141 03:09:33,720 --> 03:09:34,840 TRAINED, SUFFICIENTLY GROUNDED 5142 03:09:34,840 --> 03:09:37,560 IN SCIENCE AND PUBLIC HEALTH 5143 03:09:37,560 --> 03:09:40,080 CONCEPTS THAT WILL ENABLE THEM 5144 03:09:40,080 --> 03:09:42,360 TO PARTICIPATE CONSTRUCTIVELY IN 5145 03:09:42,360 --> 03:09:45,400 THE WIDE RANGE OF FORUMS THAT 5146 03:09:45,400 --> 03:09:47,320 INFLUENCE DECISIONS ON BREAST 5147 03:09:47,320 --> 03:09:50,200 CANCER RESEARCH. 5148 03:09:50,200 --> 03:09:51,600 NEXT SLIDE. 5149 03:09:51,600 --> 03:09:54,160 TO PROVIDE ADVOCATES WITH THESE 5150 03:09:54,160 --> 03:09:58,320 TOOLS, THE COALITION DEVELOPED 5151 03:09:58,320 --> 03:09:59,800 PROJECT LEAD, LEADERSHIP, 5152 03:09:59,800 --> 03:10:00,560 EDUCATION, ADVOCACY, AND 5153 03:10:00,560 --> 03:10:00,840 DEVELOPMENT. 5154 03:10:00,840 --> 03:10:04,400 BELIEVE IT OR NOT THIS PROGRAM 5155 03:10:04,400 --> 03:10:05,760 WAS FIRST LAUNCHED IN 1995. 5156 03:10:05,760 --> 03:10:07,720 AND OVER THE YEARS IT HAS 5157 03:10:07,720 --> 03:10:11,560 EVOLVED, YOU'LL SEE A NUMBER OF 5158 03:10:11,560 --> 03:10:13,120 DIFFERENT TYPES OF PROJECT LEAD 5159 03:10:13,120 --> 03:10:15,160 TRAINING THAT WE HAVE OFFERED AT 5160 03:10:15,160 --> 03:10:18,080 VARIOUS TIMES IN OUR HISTORY. 5161 03:10:18,080 --> 03:10:22,560 BUT AT PRESENT OUR PRIMARY 5162 03:10:22,560 --> 03:10:23,760 EDUCATIONAL TRAINING PROGRAM, 5163 03:10:23,760 --> 03:10:32,920 KEY ONE, THAT LAUNCHD INTO 5164 03:10:32,920 --> 03:10:34,920 RESEARCH ADVOCACY CAREER IS 5165 03:10:34,920 --> 03:10:37,400 PROJECT LEAD INSTITUTE, INTENSE 5166 03:10:37,400 --> 03:10:39,280 SIX-DAY IN-PERSON TRAINING 5167 03:10:39,280 --> 03:10:41,840 PROGRAM THAT EDUCATES ADVOCATES 5168 03:10:41,840 --> 03:10:43,920 ON THE SCIENCE, LANGUAGE, 5169 03:10:43,920 --> 03:10:47,440 CONCEPTS IN THE PROCESS OF 5170 03:10:47,440 --> 03:10:47,680 SCIENCE. 5171 03:10:47,680 --> 03:10:49,160 IT'S NOT AN UPDATE ON WHAT'S 5172 03:10:49,160 --> 03:10:51,160 HAPPENING IN THE FIELD OR 5173 03:10:51,160 --> 03:10:52,360 TREATMENT LANDSCAPE. 5174 03:10:52,360 --> 03:10:54,080 BUT REALLY RATHER THE KEY 5175 03:10:54,080 --> 03:10:57,040 FUNDAMENTALS OF SCIENCE AND 5176 03:10:57,040 --> 03:10:57,920 RESEARCH. 5177 03:10:57,920 --> 03:10:59,320 THE INSTITUTE CURRICULUM WHICH 5178 03:10:59,320 --> 03:11:02,160 IS VERY HIGH LEVEL SHOWN ON THE 5179 03:11:02,160 --> 03:11:05,240 RIGHT HERE IS DIFFICULT AND 5180 03:11:05,240 --> 03:11:08,200 ENCOMPASSES BASIC SCIENCE, CELL 5181 03:11:08,200 --> 03:11:09,960 AND MOLECULAR BIOLOGY, GENETICS 5182 03:11:09,960 --> 03:11:12,560 AND GENOMICS, IMMUNOLOGY, WE 5183 03:11:12,560 --> 03:11:15,200 HAVE AN EPIDEMIOLOGY CORE THAT 5184 03:11:15,200 --> 03:11:16,400 COVERS BIOSTATISTICS, AT HIGH 5185 03:11:16,400 --> 03:11:16,840 LEVEL. 5186 03:11:16,840 --> 03:11:18,480 WE DON'T EXPECT PEOPLE TO BE 5187 03:11:18,480 --> 03:11:19,680 NUMBER CRUNCHERS AFTER THEY 5188 03:11:19,680 --> 03:11:20,440 LEAVE. 5189 03:11:20,440 --> 03:11:23,960 BUT TO UNDERSTAND THE 5190 03:11:23,960 --> 03:11:24,600 STATISTICS. 5191 03:11:24,600 --> 03:11:27,360 CLINICAL TRIAL DESIGN, CRITICAL 5192 03:11:27,360 --> 03:11:31,160 APPRAISAL OF LITERATURE, BUT 5193 03:11:31,160 --> 03:11:33,880 ALSO MEDIA, AND WE HAVE ADVOCACY 5194 03:11:33,880 --> 03:11:36,520 DEVELOPMENT CORE WHICH IS REALLY 5195 03:11:36,520 --> 03:11:38,480 TO HELP ADVOCATES UNDERSTAND HOW 5196 03:11:38,480 --> 03:11:41,840 YOU GAIN INFLUENCE, WHAT ARE 5197 03:11:41,840 --> 03:11:42,720 YOUR OPPORTUNITIES, AND 5198 03:11:42,720 --> 03:11:45,160 ADVOCATES DURING PROJECT LEAD 5199 03:11:45,160 --> 03:11:46,240 PUT TOGETHER ACTION PLAN, THEY 5200 03:11:46,240 --> 03:11:48,240 DEVELOP IT OVER THE COURSE OF 5201 03:11:48,240 --> 03:11:51,680 THE WEEK, THAT THEY WILL THEN 5202 03:11:51,680 --> 03:11:53,200 TAKE -- TO UTILIZE TRAINING AND 5203 03:11:53,200 --> 03:11:57,360 MAKE IT MORE MEANINGFUL FOR 5204 03:11:57,360 --> 03:11:58,560 THEM. 5205 03:11:58,560 --> 03:12:00,760 SO, THE INSTITUTE IS LED BY 5206 03:12:00,760 --> 03:12:01,760 RENOWNED FACULTY. 5207 03:12:01,760 --> 03:12:05,240 IT'S NOT TAUGHT BY THE ADVOCATES 5208 03:12:05,240 --> 03:12:06,800 THEMSELVES, SO THAT WAS ADVOCATE 5209 03:12:06,800 --> 03:12:10,680 DEVELOPED IN COLLABORATION WITH 5210 03:12:10,680 --> 03:12:12,560 THE SCIENTIFIC AND RESEARCH 5211 03:12:12,560 --> 03:12:13,280 COMMUNITY. 5212 03:12:13,280 --> 03:12:15,280 AND THESE FACULTY COME BACK 5213 03:12:15,280 --> 03:12:16,480 VIRTUALLY EVERY YEAR. 5214 03:12:16,480 --> 03:12:19,680 OVER TIME WE HAVE BROUGHT IN NEW 5215 03:12:19,680 --> 03:12:20,640 FACULTY, BECAUSE IT'S BEEN 5216 03:12:20,640 --> 03:12:26,960 AROUND FOR QUITE A LONG TIME. 5217 03:12:26,960 --> 03:12:29,400 THE OTHER THING IS WE BRING BACK 5218 03:12:29,400 --> 03:12:33,120 FIVE TO SIX FORMER PROJECT LEAD 5219 03:12:33,120 --> 03:12:38,680 GRADS WHO WILL SERVE AS MENTORS 5220 03:12:38,680 --> 03:12:41,360 TO A GROUP, EACH MENTOR IS 5221 03:12:41,360 --> 03:12:44,320 PAIRED WITH FIVE TO SIX OF THE 5222 03:12:44,320 --> 03:12:45,920 ADVOCATES WHO ATTEND PROJECT 5223 03:12:45,920 --> 03:12:48,800 LEAD AND PROJECT LEAD CLASS IS 5224 03:12:48,800 --> 03:12:51,160 ABOUT -- RANGES FROM 30 TO 60, 5225 03:12:51,160 --> 03:12:54,760 IN FACT OUR LAST PROGRAM WAS IN 5226 03:12:54,760 --> 03:12:57,240 2019 AND WE HAD 58 INDIVIDUALS 5227 03:12:57,240 --> 03:12:57,560 PARTICIPATE. 5228 03:12:57,560 --> 03:13:04,040 SO WE BRING IN MENTORS, PAIRED 5229 03:13:04,040 --> 03:13:06,920 WITH THE NEW ADVOCATES, AND THEY 5230 03:13:06,920 --> 03:13:08,160 HELP SHEPHERD THEM THROUGH THE 5231 03:13:08,160 --> 03:13:08,400 PROGRAM. 5232 03:13:08,400 --> 03:13:12,440 AND THEN THEY ALSO WORK IN SMALL 5233 03:13:12,440 --> 03:13:13,880 GROUPS, SMALL GROUP DISCUSSIONS 5234 03:13:13,880 --> 03:13:16,160 THROUGHOUT THE INSTITUTE. 5235 03:13:16,160 --> 03:13:17,520 I'LL SAY A LITTLE MORE ABOUT 5236 03:13:17,520 --> 03:13:19,000 THAT IN A MOMENT. 5237 03:13:19,000 --> 03:13:23,480 I THINK THE THING TO CONSIDER, 5238 03:13:23,480 --> 03:13:26,760 TO BECOME A TRULY EDUCATED 5239 03:13:26,760 --> 03:13:27,400 RESEARCH ADVOCATE WE'VE 5240 03:13:27,400 --> 03:13:28,440 RECOGNIZED A LONG TIME AGO IT'S 5241 03:13:28,440 --> 03:13:31,480 NOT JUST A ONE AND DONE TRAINING 5242 03:13:31,480 --> 03:13:34,760 COURSE, THAT THE ADVOCATES GO 5243 03:13:34,760 --> 03:13:35,080 THROUGH. 5244 03:13:35,080 --> 03:13:36,800 ONCE THEY LEAVE PROJECT LEAD 5245 03:13:36,800 --> 03:13:38,560 THEY ARE EQUIPPED TO PARTICIPATE 5246 03:13:38,560 --> 03:13:39,440 IN RESEARCH. 5247 03:13:39,440 --> 03:13:43,560 WE KNOW IT'S A PROCESS. 5248 03:13:43,560 --> 03:13:45,360 IT REQUIRES ONGOING EDUCATION 5249 03:13:45,360 --> 03:13:47,280 AND TRAINING AND STAYING CURRENT 5250 03:13:47,280 --> 03:13:51,200 WITH ISSUES AND FRANKLY A LOT OF 5251 03:13:51,200 --> 03:13:51,880 SELF-TRAINING. 5252 03:13:51,880 --> 03:13:55,920 WE DO OFFER ONGOING CONTINUING 5253 03:13:55,920 --> 03:13:57,720 EDUCATION, WE PROVIDE WEBINARS, 5254 03:13:57,720 --> 03:14:00,160 ROUGHLY FIVE TO TEN PER YEAR 5255 03:14:00,160 --> 03:14:03,240 DEPENDING ON WHAT'S GOING ON, ON 5256 03:14:03,240 --> 03:14:04,240 DIFFERENT TOPICS. 5257 03:14:04,240 --> 03:14:06,640 USUALLY STILL BUILDING RELATED 5258 03:14:06,640 --> 03:14:09,720 TOPICS OR AROUND SPECIFIC BREAST 5259 03:14:09,720 --> 03:14:11,680 CANCER, YOU KNOW, RESEARCH, SOME 5260 03:14:11,680 --> 03:14:13,640 NEW AREA THAT'S COMING INTO 5261 03:14:13,640 --> 03:14:16,240 FOCUS, WE WANT ADVOCATES TO BE 5262 03:14:16,240 --> 03:14:20,320 EQUIPPED TO BE ABLE TO TALK 5263 03:14:20,320 --> 03:14:25,880 ABOUT THOSE THINGS. 5264 03:14:25,880 --> 03:14:28,240 TWO SERIES THIS YEAR, ONE A 5265 03:14:28,240 --> 03:14:30,640 SERIES ON CRITICAL APPRAISAL OF 5266 03:14:30,640 --> 03:14:31,920 CLINICAL TRIAL PUBLICATIONS IN 5267 03:14:31,920 --> 03:14:33,200 LITERATURE, WHAT ADVOCATES NEED 5268 03:14:33,200 --> 03:14:34,840 TO UNDERSTAND ABOUT WHEN THEY 5269 03:14:34,840 --> 03:14:36,440 READ THESE ARTICLES. 5270 03:14:36,440 --> 03:14:39,200 WHAT TO LOOK FOR. 5271 03:14:39,200 --> 03:14:42,760 AND ALSO ANOTHER SERIES ON THE 5272 03:14:42,760 --> 03:14:44,760 ETHICS OF RESEARCH, INCLUDING 5273 03:14:44,760 --> 03:14:45,960 CLINICAL TRIAL DESIGN, IRBs, 5274 03:14:45,960 --> 03:14:48,320 HOW ALL OF THAT FUNCTIONS. 5275 03:14:48,320 --> 03:14:51,280 MIND YOU THEY HAVE HAD SOME OF 5276 03:14:51,280 --> 03:14:52,960 THIS DURING THEIR VIRTUAL -- 5277 03:14:52,960 --> 03:14:53,520 DURING THE PROJECT LEAD 5278 03:14:53,520 --> 03:14:56,880 INSTITUTE BUT THIS IS JUST 5279 03:14:56,880 --> 03:15:00,160 CONTINUING TO BUILD ON THEIR 5280 03:15:00,160 --> 03:15:00,920 TRAINING. 5281 03:15:00,920 --> 03:15:05,840 INTERESTINGLY TOO WE HAVE ALSO 5282 03:15:05,840 --> 03:15:06,600 RECENTLY LAUNCHED -- NANCY 5283 03:15:06,600 --> 03:15:08,960 TALKED ABOUT THE LEARNING 5284 03:15:08,960 --> 03:15:10,440 MANAGEMENT SYSTEM SAINT 5285 03:15:10,440 --> 03:15:11,760 BALDRICK'S ARE USING, WE'RE 5286 03:15:11,760 --> 03:15:13,400 USING TALENT LMS AS WELL. 5287 03:15:13,400 --> 03:15:16,680 OUR ABILITY TO DO THIS CAME OUT 5288 03:15:16,680 --> 03:15:20,080 OF A PCORI-FUNDED GRANT TO BUILD 5289 03:15:20,080 --> 03:15:24,160 THE CAPACITY FOR TRAINING AND 5290 03:15:24,160 --> 03:15:25,640 ONGOING EDUCATION OF OUR 5291 03:15:25,640 --> 03:15:27,520 ADVOCATE COMMUNITY ON 5292 03:15:27,520 --> 03:15:28,440 PATIENT-CENTERED OUTCOMES 5293 03:15:28,440 --> 03:15:28,720 RESEARCH. 5294 03:15:28,720 --> 03:15:30,760 AND SO WE HAVE A LEARNING 5295 03:15:30,760 --> 03:15:31,880 MANAGEMENT SYSTEM WHERE OF WHAT 5296 03:15:31,880 --> 03:15:34,680 WE'RE DOING AT THIS POINT IS 5297 03:15:34,680 --> 03:15:36,240 REPURPOSING WEBINAR TRAININGS 5298 03:15:36,240 --> 03:15:39,160 THAT WE CONDUCTED OVER THE PAST, 5299 03:15:39,160 --> 03:15:40,760 INTO MODULAR CONTENT THAT 5300 03:15:40,760 --> 03:15:44,520 ADVOCATES CAN ACCESS ON DEMAND. 5301 03:15:44,520 --> 03:15:46,360 IT INCLUDES QUIZZES AND SIMILAR 5302 03:15:46,360 --> 03:15:48,880 TO WHAT NANCY HAD DESCRIBED. 5303 03:15:48,880 --> 03:15:52,400 AND THEN OF COURSE WE ALSO OFFER 5304 03:15:52,400 --> 03:15:55,800 OUR ANNUAL SUMMIT WHICH PROVIDES 5305 03:15:55,800 --> 03:16:00,080 US WITH AN OPPORTUNITY TO 5306 03:16:00,080 --> 03:16:00,960 PROVIDE WORKSHOPS, PLENARY PANEL 5307 03:16:00,960 --> 03:16:05,400 DISCUSSIONS ON A VARIETY OF 5308 03:16:05,400 --> 03:16:06,360 ISSUES TO ADVOCATE LEADERSHIP. 5309 03:16:06,360 --> 03:16:08,360 AND SO WE HAVE A NUMBER OF 5310 03:16:08,360 --> 03:16:10,320 PROGRAMS THAT WE EVEN TRIED THIS 5311 03:16:10,320 --> 03:16:13,960 YEAR A PUBLIC POLICY PROJECT 5312 03:16:13,960 --> 03:16:17,760 LEAD FOR ADVOCATES MORE INVOLVED 5313 03:16:17,760 --> 03:16:20,960 IN PUBLIC POLICY ADVOCACY. 5314 03:16:20,960 --> 03:16:21,400 NEXT SLIDE. 5315 03:16:21,400 --> 03:16:26,560 THIS IS JUST A SLIDE THAT SHOWS 5316 03:16:26,560 --> 03:16:29,000 OUR MOST RECENT PROJECT LEAD 5317 03:16:29,000 --> 03:16:29,200 CLASS. 5318 03:16:29,200 --> 03:16:30,360 IT WAS FROM 2019. 5319 03:16:30,360 --> 03:16:35,960 ALSO ON THE RIGHT SIDE ARE THE 5320 03:16:35,960 --> 03:16:38,000 MENTORS THAT CAME THAT YEAR. 5321 03:16:38,000 --> 03:16:41,320 OF COURSE WE HAVEN'T AN ABLE TO 5322 03:16:41,320 --> 03:16:43,000 HOST A PROJECT LEAD IN TWO YEARS 5323 03:16:43,000 --> 03:16:45,640 BECAUSE OF THE PANDEMIC BUT THIS 5324 03:16:45,640 --> 03:16:47,600 YEAR WE'RE PLANNING FOR, KNOCK 5325 03:16:47,600 --> 03:16:51,720 ON WOOD, THAT WE'RE GOING TO BE 5326 03:16:51,720 --> 03:16:52,520 HOSTING TWO IN-PERSON SESSIONS. 5327 03:16:52,520 --> 03:16:54,960 AT THE END OF JULY AND IN THE 5328 03:16:54,960 --> 03:16:58,440 FIRST PART OF AUGUST. 5329 03:16:58,440 --> 03:16:59,200 SO, NEXT SLIDE. 5330 03:16:59,200 --> 03:17:01,360 I WANTED TO SAY A LITTLE BIT 5331 03:17:01,360 --> 03:17:02,720 ABOUT THE DEVELOPMENT OF THIS. 5332 03:17:02,720 --> 03:17:04,440 AGAIN, THIS WAS DEVELOPED BACK 5333 03:17:04,440 --> 03:17:07,400 IN 1995, IT WAS LARGELY DRIVEN 5334 03:17:07,400 --> 03:17:11,000 OUT OF THE NEED AS I MENTIONED 5335 03:17:11,000 --> 03:17:13,240 EARLIER THAT WE FELT ADVOCATES 5336 03:17:13,240 --> 03:17:15,560 COULD PLAY A PART AND WERE DOING 5337 03:17:15,560 --> 03:17:17,680 SO IN THE DEPARTMENT OF DEFENSE, 5338 03:17:17,680 --> 03:17:23,240 BREAST CANCER RESEARCH PROGRAM, 5339 03:17:23,240 --> 03:17:24,960 WHICH NBCC ADVOCACY HELPED BRING 5340 03:17:24,960 --> 03:17:27,400 ABOUT, TO PLAY A PART IN THESE 5341 03:17:27,400 --> 03:17:28,920 TYPES OF RESEARCH ENDEAVORS THEY 5342 03:17:28,920 --> 03:17:30,240 NEED TO BE EDUCATED. 5343 03:17:30,240 --> 03:17:32,680 THAT'S WHAT PROMPTED THE DESIGN 5344 03:17:32,680 --> 03:17:34,720 OF THIS, AND IT WAS HOW IT 5345 03:17:34,720 --> 03:17:35,560 ORIGINALLY WAS DESIGNED. 5346 03:17:35,560 --> 03:17:36,560 THERE'S SOME PUBLICATIONS ON IT. 5347 03:17:36,560 --> 03:17:37,920 I WISH I WOULD HAVE PUT THEM IN 5348 03:17:37,920 --> 03:17:38,960 THE SLIDE PRESENTATION. 5349 03:17:38,960 --> 03:17:44,320 I CAN SHARE THEM IN THE CHAT. 5350 03:17:44,320 --> 03:17:46,280 INITIAL PROGRAM WAS PROJECT LEAD 5351 03:17:46,280 --> 03:17:47,920 PROGRAM DEVELOPED IN 5352 03:17:47,920 --> 03:17:49,800 COLLABORATION WITH SOME 5353 03:17:49,800 --> 03:17:53,040 SCIENTISTS, AND RESEARCHERS, KAY 5354 03:17:53,040 --> 03:17:54,400 DICKERSON, ROBERT MILLIKEN, A 5355 03:17:54,400 --> 03:17:56,560 NUMBER OF OTHERS ACTUALLY. 5356 03:17:56,560 --> 03:17:57,720 AS WELL AS ADVOCATES. 5357 03:17:57,720 --> 03:17:59,920 THEY FIRST CAME TOGETHER IN A 5358 03:17:59,920 --> 03:18:03,840 MEETING TO IDENTIFY WHAT ARE THE 5359 03:18:03,840 --> 03:18:05,760 KEY COMPETENCIES THAT THIS 5360 03:18:05,760 --> 03:18:07,680 TRAINING PROGRAM SHOULD 5361 03:18:07,680 --> 03:18:09,120 ENCOMPASS. 5362 03:18:09,120 --> 03:18:13,560 AND THEN A GROUP OF FACULTY AND 5363 03:18:13,560 --> 03:18:17,040 INSTRUCTIONAL DESIGNER, MOLLY 5364 03:18:17,040 --> 03:18:18,160 MEADE, DEVELOPED THE KEY 5365 03:18:18,160 --> 03:18:19,720 COMPONENTS, DEVELOPED 5366 03:18:19,720 --> 03:18:21,760 ITERATIVELY AND UPDATED OVER THE 5367 03:18:21,760 --> 03:18:23,360 FIRST FOUR YEARS, IN THE VERY 5368 03:18:23,360 --> 03:18:24,880 BEGINNING DAYS OF PROJECT LEAD 5369 03:18:24,880 --> 03:18:26,320 WE ACTUALLY OFFERED IT FOUR 5370 03:18:26,320 --> 03:18:27,040 TIMES A YEAR. 5371 03:18:27,040 --> 03:18:28,480 IN DIFFERENT PARTS OF THE 5372 03:18:28,480 --> 03:18:29,480 COUNTRY. 5373 03:18:29,480 --> 03:18:32,360 NOW WE ONLY OFFER IT ONCE A 5374 03:18:32,360 --> 03:18:32,560 YEAR. 5375 03:18:32,560 --> 03:18:34,640 BUT IT WAS UPDATED ITERATIVELY 5376 03:18:34,640 --> 03:18:38,000 AND THEY ACTUALLY DID AN 5377 03:18:38,000 --> 03:18:40,520 EVALUATION TO EXPLORE THE 5378 03:18:40,520 --> 03:18:44,360 LEARNING OF THE LEAD GRADS AND 5379 03:18:44,360 --> 03:18:46,120 WHAT LEAD GRADS -- HOW THEY 5380 03:18:46,120 --> 03:18:47,240 UTILIZED THE TRAINING. 5381 03:18:47,240 --> 03:18:49,680 AS I SAY, THIS IS PUBLISHED, 5382 03:18:49,680 --> 03:18:54,280 I'LL PUT A LINK INTO THE CHAT 5383 03:18:54,280 --> 03:18:56,680 WHEN I'M DONE HERE, BUT A LITTLE 5384 03:18:56,680 --> 03:18:58,960 BIT ABOUT THE PROGRAM ITSELF, AS 5385 03:18:58,960 --> 03:19:00,280 I MENTIONED, WHEN IT WAS 5386 03:19:00,280 --> 03:19:02,920 DEVELOPED IT WAS DEVELOPED WITH 5387 03:19:02,920 --> 03:19:05,960 ADULT LEARNING PRINCIPLES TO 5388 03:19:05,960 --> 03:19:09,400 MAKE IT ACCESSIBLE TO THE LAY 5389 03:19:09,400 --> 03:19:15,160 AUDIENCE THAT IT SERVED. 5390 03:19:15,160 --> 03:19:17,160 IT'S BASICALLY -- WHAT THE 5391 03:19:17,160 --> 03:19:18,920 PROGRAM OFFERS ARE ONE-HOUR 5392 03:19:18,920 --> 03:19:22,400 LECTURES, ONE AND A HALF TO ONE 5393 03:19:22,400 --> 03:19:26,440 HOUR LECTURES BY FACULTY, 5394 03:19:26,440 --> 03:19:27,880 RENOWNED RESEARCHERS AND 5395 03:19:27,880 --> 03:19:29,760 SCIENTISTS, AND THAT PROVIDES 5396 03:19:29,760 --> 03:19:30,960 THE PRIMARY CONTENT THAT THEY 5397 03:19:30,960 --> 03:19:31,560 ARE LEARNING. 5398 03:19:31,560 --> 03:19:34,680 AND THEN ALL OF THE LECTURES ARE 5399 03:19:34,680 --> 03:19:36,880 INTERSPERSED WITH MULTIPLE SMALL 5400 03:19:36,880 --> 03:19:38,840 GROUPS, STUDY GROUP SESSIONS, 5401 03:19:38,840 --> 03:19:40,960 WHERE THE CONTENT IS FACILITATED 5402 03:19:40,960 --> 03:19:43,520 BY THE PROJECT LEAD -- THE 5403 03:19:43,520 --> 03:19:46,240 MENTORS THAT ARE PARTICIPATING. 5404 03:19:46,240 --> 03:19:48,960 WE BRING FACULTY AND POSTDOCS 5405 03:19:48,960 --> 03:19:50,760 INTO THE ROOMS TO HELP WITH 5406 03:19:50,760 --> 03:19:51,080 CLARIFICATION. 5407 03:19:51,080 --> 03:19:54,000 IT'S PLENTY TO BE -- MEANT TO 5408 03:19:54,000 --> 03:19:56,400 BE A TIME TO WALK THROUGH THE 5409 03:19:56,400 --> 03:20:01,000 KEY CONTENT, THEY DO CASE STUDY 5410 03:20:01,000 --> 03:20:03,120 ANALYSES, EVEN GROUP PROJECTS. 5411 03:20:03,120 --> 03:20:04,400 THE INSTITUTE CULMINATES WITH 5412 03:20:04,400 --> 03:20:06,480 EACH OF THE GROUPS DOING A 5413 03:20:06,480 --> 03:20:09,960 PROJECT THAT THEY PRESENT OUT TO 5414 03:20:09,960 --> 03:20:12,560 THE LARGER GROUP OF 5415 03:20:12,560 --> 03:20:12,880 PARTICIPANTS. 5416 03:20:12,880 --> 03:20:14,560 AND I SHOULD ALSO NOTE THAT 5417 03:20:14,560 --> 03:20:17,120 THERE'S A LOT OF WORK THAT THEY 5418 03:20:17,120 --> 03:20:20,400 HAVE TO DO IN ADVANCE BEFORE 5419 03:20:20,400 --> 03:20:21,600 THEY COME TO LEAD SO THERE'S 5420 03:20:21,600 --> 03:20:23,720 SOME PRE-WORK THEY NEED TO DO. 5421 03:20:23,720 --> 03:20:25,000 THAT'S DONE OVER THE -- IT'S 5422 03:20:25,000 --> 03:20:27,640 PROBABLY FOUR TO SIX HOURS WORTH 5423 03:20:27,640 --> 03:20:28,520 OF WORK READING THAT THEY HAVE 5424 03:20:28,520 --> 03:20:32,160 TO DO BEFORE THEY COME TO LEAD. 5425 03:20:32,160 --> 03:20:33,960 AND THEN I WILL SAY ONE THING, I 5426 03:20:33,960 --> 03:20:35,160 DIDN'T PRESENT A SLIDE ON THIS, 5427 03:20:35,160 --> 03:20:38,480 BUT IN TERMS OF HOW WE SELECT 5428 03:20:38,480 --> 03:20:41,360 OUR ADVOCATES, AGAIN, I SAID 5429 03:20:41,360 --> 03:20:43,720 THAT WE BRING BETWEEN -- USUALLY 5430 03:20:43,720 --> 03:20:44,760 IT'S BEEN 40 TO 50. 5431 03:20:44,760 --> 03:20:47,800 THIS YEAR BECAUSE OF THE NEED 5432 03:20:47,800 --> 03:20:51,640 FOR SOCIAL DISTANCING WE'LL 5433 03:20:51,640 --> 03:20:56,360 PROBABLY LIMIT TO 30 FOR EACH 5434 03:20:56,360 --> 03:20:56,840 SESSION, A COMPETITIVE 5435 03:20:56,840 --> 03:21:00,320 APPLICATION PROCESS. 5436 03:21:00,320 --> 03:21:04,640 WE PROMOTE IT BROADLY. 5437 03:21:04,640 --> 03:21:06,840 WE DON'T HAVE TO SPEND A LOT OF 5438 03:21:06,840 --> 03:21:08,800 TIME WITH RECRUITMENT. 5439 03:21:08,800 --> 03:21:14,480 APPLICANTS HAVE TO COMPLETE AN 5440 03:21:14,480 --> 03:21:15,800 APPLICATION, WE TRYING TO 5441 03:21:15,800 --> 03:21:17,080 RECRUIT MOTIVATED APPLICANTS. 5442 03:21:17,080 --> 03:21:18,680 COURSE WORK IS DEMANDING. 5443 03:21:18,680 --> 03:21:20,600 WE WANT TO PICK PEOPLE 5444 03:21:20,600 --> 03:21:24,000 INTERESTED IN PARTICIPATING IN 5445 03:21:24,000 --> 03:21:27,280 RESEARCH AND WHO WILL GO ON AND 5446 03:21:27,280 --> 03:21:29,040 CONTINUE THEIR ADVOCACY WORK. 5447 03:21:29,040 --> 03:21:32,480 WE DEFINITELY AIM FOR VERY 5448 03:21:32,480 --> 03:21:33,080 DIVERSE POPULATION OF 5449 03:21:33,080 --> 03:21:36,960 INDIVIDUALS TO COME TO THIS. 5450 03:21:36,960 --> 03:21:39,440 AND THE APPLICANTS NEED TO 5451 03:21:39,440 --> 03:21:41,560 DEMONSTRATE THEY HAVE EXPERIENCE 5452 03:21:41,560 --> 03:21:44,600 IN ADVOCACY, AND ALSO AS I SAY 5453 03:21:44,600 --> 03:21:46,720 AN INTEREST IN MEDICAL RESEARCH 5454 03:21:46,720 --> 03:21:48,760 BEFORE WE WILL SELECT THEM. 5455 03:21:48,760 --> 03:21:51,360 LET'S SEE. 5456 03:21:51,360 --> 03:21:54,360 NEXT SLIDE. 5457 03:21:54,360 --> 03:21:55,760 SO THIS JUST HIGHLIGHTS A LITTLE 5458 03:21:55,760 --> 03:21:57,520 BIT ABOUT WHAT THE ADVOCATES WHO 5459 03:21:57,520 --> 03:21:59,960 GO THROUGH PROJECT LEAD DO. 5460 03:21:59,960 --> 03:22:02,000 WE TRAINED OVER 2500 LEAD GRADS 5461 03:22:02,000 --> 03:22:04,400 OVER THE YEARS FROM ALL OF THE 5462 03:22:04,400 --> 03:22:06,000 STATES AND FROM ACTUALLY MANY 5463 03:22:06,000 --> 03:22:06,560 COUNTRIES. 5464 03:22:06,560 --> 03:22:09,400 IN FACT AT ONE POINT HAD AN 5465 03:22:09,400 --> 03:22:10,080 INTERNATIONAL PROJECT LEAD, WENT 5466 03:22:10,080 --> 03:22:12,040 TO A VARIETY OF COUNTRIES TO 5467 03:22:12,040 --> 03:22:16,400 DELIVER THE CONTENT, WHICH IS 5468 03:22:16,400 --> 03:22:18,160 LOGISTICALLY VERY DIFFICULT. 5469 03:22:18,160 --> 03:22:19,640 RESOURCE, THEY SERVE AS 5470 03:22:19,640 --> 03:22:20,480 RESOURCES IN THE LOCAL 5471 03:22:20,480 --> 03:22:21,640 COMMUNITIES, AGAIN THAT'S WHAT 5472 03:22:21,640 --> 03:22:22,720 ADVOCATES OFTEN DO. 5473 03:22:22,720 --> 03:22:23,880 THEY ARE BRINGING BACK 5474 03:22:23,880 --> 03:22:26,160 INFORMATION TO THEIR 5475 03:22:26,160 --> 03:22:29,000 CONSTITUENCIES, THEY SERVE ON 5476 03:22:29,000 --> 03:22:34,360 SCIENTIFIC PEER REVIEW PANELS, 5477 03:22:34,360 --> 03:22:36,320 PARTICIPATE IN CLINICAL TRIALS, 5478 03:22:36,320 --> 03:22:37,840 NBCC'S WHICH WE RUN, SERVE ON 5479 03:22:37,840 --> 03:22:44,680 NAGS NATIONAL POLICY COMMITTEES 5480 03:22:44,680 --> 03:22:47,320 SHAPING THE AGENDA CHANGING THE 5481 03:22:47,320 --> 03:22:49,080 BREAST CANCER CONVERSATION AND 5482 03:22:49,080 --> 03:22:49,280 FOCUS. 5483 03:22:49,280 --> 03:22:49,920 NEXT SLIDE. 5484 03:22:49,920 --> 03:22:52,400 THIS IS -- I WON'T DIVE IN TOO 5485 03:22:52,400 --> 03:22:54,920 DEEPLY BUT THESE ARE TWO 5486 03:22:54,920 --> 03:22:57,160 EXAMPLES OF SOME OF THE PRIMARY 5487 03:22:57,160 --> 03:22:58,720 AREAS THAT ADVOCATES WHO GO 5488 03:22:58,720 --> 03:23:01,320 THROUGH PROJECT LEAD GET 5489 03:23:01,320 --> 03:23:03,560 INVOLVED WITH, SO DEPARTMENT OF 5490 03:23:03,560 --> 03:23:04,960 DEFENSE BREAST CANCER RESEARCH 5491 03:23:04,960 --> 03:23:06,480 PROGRAM WHICH WAS THE FIRST OF 5492 03:23:06,480 --> 03:23:09,080 ITS KIND IN THE DoD PROGRAM 5493 03:23:09,080 --> 03:23:12,160 AND WAS BROUGHT ABOUT BY NBCC 5494 03:23:12,160 --> 03:23:14,560 ADVOCACY, SOMETHING THAT ALSO 5495 03:23:14,560 --> 03:23:17,040 FROM ITS ONSET REALLY INVOLVED 5496 03:23:17,040 --> 03:23:18,520 ADVOCATES IN THE PROCESS. 5497 03:23:18,520 --> 03:23:22,200 ADVOCATES ARE ON THE INTEGRATION 5498 03:23:22,200 --> 03:23:26,480 PANEL, AND PEER REVIEW PANELS. 5499 03:23:26,480 --> 03:23:28,000 THEY PARTICIPATE AND DO PEER 5500 03:23:28,000 --> 03:23:29,960 REVIEW AND SO THAT IS PROBABLY 5501 03:23:29,960 --> 03:23:33,360 ONE OF THE MOST COMMON THINGS 5502 03:23:33,360 --> 03:23:35,680 THAT THE ADVOCATES GET INVOLVED 5503 03:23:35,680 --> 03:23:36,280 WITH. 5504 03:23:36,280 --> 03:23:40,400 THERE ARE AT LEAST 100 TO 150 5505 03:23:40,400 --> 03:23:44,520 ADVOCATES CALLED TO DUTY, IF YOU 5506 03:23:44,520 --> 03:23:45,880 WILL FOR THE BREAST CANCER 5507 03:23:45,880 --> 03:23:49,120 RESEARCH PROGRAM EACH YEAR. 5508 03:23:49,120 --> 03:23:52,280 NBCC ADVOCATES ARE A PRIME 5509 03:23:52,280 --> 03:23:54,000 SOURCE OF PATIENT ADVOCATES 5510 03:23:54,000 --> 03:23:54,360 INVOLVED. 5511 03:23:54,360 --> 03:23:57,640 THE OTHER THING ADVOCATES ARE 5512 03:23:57,640 --> 03:24:02,560 INVOLVED WITH IS OUR ARTEMIS 5513 03:24:02,560 --> 03:24:05,760 PROJECT, STARTED IN 2010, THIS 5514 03:24:05,760 --> 03:24:07,520 INNOVATIVE MISSION-DRIVEN 5515 03:24:07,520 --> 03:24:08,840 APPROACH THAT INVOLVES THESE 5516 03:24:08,840 --> 03:24:12,080 STRATEGIC SUMMITS, WORKSHOPS. 5517 03:24:12,080 --> 03:24:14,200 I JUST CAME BACK FROM ARTEMIS 5518 03:24:14,200 --> 03:24:14,480 THIS WEEK. 5519 03:24:14,480 --> 03:24:17,640 WHAT WE DID, IT WAS LAUNCHED BY 5520 03:24:17,640 --> 03:24:20,360 ADVOCATES, RUN BY ADVOCATES, BUT 5521 03:24:20,360 --> 03:24:23,240 INVOLVES A BROAD COLLABORATION 5522 03:24:23,240 --> 03:24:25,640 OF RESEARCHERS, SCIENTISTS, 5523 03:24:25,640 --> 03:24:27,800 INDUSTRY, THE GOVERNMENT, IN 5524 03:24:27,800 --> 03:24:30,360 FACT, WHO COME TOGETHER AND 5525 03:24:30,360 --> 03:24:34,600 STRATEGIZE ON -- LED BY 5526 03:24:34,600 --> 03:24:36,280 ADVOCATES, WHAT ARE STRATEGIES 5527 03:24:36,280 --> 03:24:38,000 FOR PRIMARY PREVENTION, 5528 03:24:38,000 --> 03:24:39,560 PREVENTION OF METASTASES, AND I 5529 03:24:39,560 --> 03:24:41,360 WILL SAY THAT ADVOCATE 5530 03:24:41,360 --> 03:24:44,560 INVOLVEMENT IN THIS PROJECT HAS 5531 03:24:44,560 --> 03:24:45,640 BEEN REALLY TRANSFORMATIVE. 5532 03:24:45,640 --> 03:24:47,920 WE'VE SEEN SO MANY DIFFERENT 5533 03:24:47,920 --> 03:24:49,800 RESEARCH COLLABORATIONS, ALL 5534 03:24:49,800 --> 03:24:51,760 THAT INVOLVE ADVOCATES, IN THOSE 5535 03:24:51,760 --> 03:24:54,720 RESEARCH COLLABORATIONS COME OUT 5536 03:24:54,720 --> 03:24:56,360 OF ARTEMIS, ALSO LOOKING TO 5537 03:24:56,360 --> 03:24:59,160 ADVANCE PHASE 1 VACCINE TRIAL. 5538 03:24:59,160 --> 03:25:01,520 THAT ALL CAME ABOUT BY ADVOCATES 5539 03:25:01,520 --> 03:25:03,960 ASKING THE QUESTION, CAN THERE 5540 03:25:03,960 --> 03:25:07,440 BE A VACCINE TO PREVENT BREAST 5541 03:25:07,440 --> 03:25:07,680 CANCER? 5542 03:25:07,680 --> 03:25:09,920 IN THE BEGINNING MOST OF THE 5543 03:25:09,920 --> 03:25:10,520 SCIENTISTS AND RESEARCHERS 5544 03:25:10,520 --> 03:25:13,040 LAUGHED AT THE IDEA, BUT WE ARE 5545 03:25:13,040 --> 03:25:15,360 ACTUALLY NOW IN A PHASE -- 5546 03:25:15,360 --> 03:25:17,080 GEARING FOR A PHASE 1 TRIAL AND 5547 03:25:17,080 --> 03:25:18,160 WORKING WITH THE NCI PREVENT 5548 03:25:18,160 --> 03:25:23,120 PROGRAM ON THAT. 5549 03:25:23,120 --> 03:25:24,920 THESE ARE ALL ADVOCATE-DRIVEN 5550 03:25:24,920 --> 03:25:26,160 ACTIVITIES. 5551 03:25:26,160 --> 03:25:29,800 I WANTED TO SHARE THOSE EXAMPLES 5552 03:25:29,800 --> 03:25:31,600 OF HOW ADVOCATES GET INVOLVED. 5553 03:25:31,600 --> 03:25:33,720 THIS IS PERHAPS MY LAST SLIDE. 5554 03:25:33,720 --> 03:25:36,280 THERE ARE A NUMBER OF 5555 03:25:36,280 --> 03:25:36,560 CHALLENGES. 5556 03:25:36,560 --> 03:25:38,520 WE'VE HEARD FROM OUR TWO 5557 03:25:38,520 --> 03:25:41,000 PREVIOUS SPEAKERS A LOT OF 5558 03:25:41,000 --> 03:25:42,560 TRAINING PROGRAMS ARE VIRTUAL. 5559 03:25:42,560 --> 03:25:44,720 BECAUSE THEY ARE MUCH MORE COST 5560 03:25:44,720 --> 03:25:45,200 EFFECTIVE. 5561 03:25:45,200 --> 03:25:49,760 WE REALLY SEE THE VALUE OF 5562 03:25:49,760 --> 03:25:51,560 ENGAGING ADVOCATES IN PERSON AND 5563 03:25:51,560 --> 03:25:53,440 GIVING THEM -- IT'S A REALLY 5564 03:25:53,440 --> 03:25:55,320 SPECIAL OPPORTUNITY WHEN THEY 5565 03:25:55,320 --> 03:25:59,240 COME TOGETHER WITH A SHARED 5566 03:25:59,240 --> 03:26:01,560 HISTORY, AND SHARED GOAL, TO 5567 03:26:01,560 --> 03:26:04,200 PICK UP THAT TRAINING. 5568 03:26:04,200 --> 03:26:06,280 SO THE MAJOR CHALLENGE FOR US IS 5569 03:26:06,280 --> 03:26:08,760 THE COST OF THAT PROGRAM WHICH 5570 03:26:08,760 --> 03:26:12,160 IS NOT INSIGNIFICANT. 5571 03:26:12,160 --> 03:26:13,560 WE'VE MANAGED FOR I GUESS MORE 5572 03:26:13,560 --> 03:26:15,560 THAN 25 YEARS TO BE ABLE TO 5573 03:26:15,560 --> 03:26:16,400 OFFER IT. 5574 03:26:16,400 --> 03:26:17,320 BUT THERE'S ALWAYS EVERY YEAR 5575 03:26:17,320 --> 03:26:19,360 TRYING TO MAKE SURE THAT WE'RE 5576 03:26:19,360 --> 03:26:22,320 ABLE TO RAISE THE FUNDS TO COVER 5577 03:26:22,320 --> 03:26:24,000 THE COST OF THAT PROGRAM, WHICH 5578 03:26:24,000 --> 03:26:26,840 COME LARGELY FROM OUR MAJOR 5579 03:26:26,840 --> 03:26:27,080 DONORS. 5580 03:26:27,080 --> 03:26:29,120 WE ATTEMPT TO -- WE HAVE TO KEEP 5581 03:26:29,120 --> 03:26:31,080 THE PROGRAM CURRENT BUT 5582 03:26:31,080 --> 03:26:32,600 FORTUNATELY WE WORK WITH OUR 5583 03:26:32,600 --> 03:26:35,360 FACULTY WHO COME BACK YEAR AFTER 5584 03:26:35,360 --> 03:26:39,000 YEAR, THEY HELP TO KEEP THAT 5585 03:26:39,000 --> 03:26:41,240 CONTENT CURRENT. 5586 03:26:41,240 --> 03:26:43,400 RECRUITING AND IDENTIFYING 5587 03:26:43,400 --> 03:26:45,280 ADVOCATES, THAT'S NOT AN 5588 03:26:45,280 --> 03:26:47,560 INSIGNIFICANT TASK BECAUSE WE 5589 03:26:47,560 --> 03:26:50,840 ONLY HAVE, YOU KNOW, 40 OR 50 5590 03:26:50,840 --> 03:26:51,400 SPOTS. 5591 03:26:51,400 --> 03:26:53,160 SO WE'RE TRYING TO EVALUATE THEM 5592 03:26:53,160 --> 03:26:54,640 FOR WHO ARE THE PEOPLE WHO ARE 5593 03:26:54,640 --> 03:26:56,200 GOING TO STICK THROUGH THIS AND 5594 03:26:56,200 --> 03:26:59,800 REALLY WANT TO BE PART OF 5595 03:26:59,800 --> 03:27:00,080 ADVOCACY. 5596 03:27:00,080 --> 03:27:03,520 AND THEN I THINK ONE OF THE 5597 03:27:03,520 --> 03:27:04,600 BIGGER CHALLENGES IS PROVIDING 5598 03:27:04,600 --> 03:27:06,040 OPPORTUNITIES THEN TO THOSE 5599 03:27:06,040 --> 03:27:06,360 ADVOCATES. 5600 03:27:06,360 --> 03:27:09,560 WE TRY TO DO THAT. 5601 03:27:09,560 --> 03:27:11,320 AS I SAY, DEPARTMENT OF DEFENSE 5602 03:27:11,320 --> 03:27:12,080 BREAST CANCER RESEARCH PROGRAM 5603 03:27:12,080 --> 03:27:14,520 IS ONE PLACE PEOPLE FUNNEL INTO 5604 03:27:14,520 --> 03:27:17,440 VERY QUICKLY AFTER PROJECT LEAD. 5605 03:27:17,440 --> 03:27:20,160 BUT WE DON'T HAVE ANY FORMAL 5606 03:27:20,160 --> 03:27:22,080 MECHANISMS IN PLACE AT THIS 5607 03:27:22,080 --> 03:27:23,320 POINT TO REALLY CONNECT 5608 03:27:23,320 --> 03:27:25,360 ADVOCATES WHO ARE SO EAGER, 5609 03:27:25,360 --> 03:27:28,760 ESPECIALLY AFTER THEY LEAVE 5610 03:27:28,760 --> 03:27:30,160 PROJECT LEAD, TO -- WHAT ARE 5611 03:27:30,160 --> 03:27:31,040 THOSE OPPORTUNITIES? 5612 03:27:31,040 --> 03:27:34,360 WE'RE STARTING TO SEE MORE AND 5613 03:27:34,360 --> 03:27:37,080 MORE RESEARCHERS ENGAGING WITH 5614 03:27:37,080 --> 03:27:38,360 ADVOCATES, AND SO THAT'S 5615 03:27:38,360 --> 03:27:38,640 ENCOURAGING. 5616 03:27:38,640 --> 03:27:40,520 AND WE TRY TO CONNECT ADVOCATES 5617 03:27:40,520 --> 03:27:42,040 WHEN PEOPLE REACH OUT TO US 5618 03:27:42,040 --> 03:27:43,680 LOOKING FOR THEM BUT THAT'S ONE 5619 03:27:43,680 --> 03:27:45,880 OF THE BIGGER CHALLENGES THAT WE 5620 03:27:45,880 --> 03:27:46,560 HAVE AS WELL. 5621 03:27:46,560 --> 03:27:48,360 I THINK WITH THAT I'LL STOP SO 5622 03:27:48,360 --> 03:27:50,000 WE CAN OPEN UP TO LARGER 5623 03:27:50,000 --> 03:27:52,200 DISCUSSION. 5624 03:27:52,200 --> 03:27:56,360 5625 03:27:56,360 --> 03:27:58,920 >> THREE EXCELLENT PROGRAMS OF 5626 03:27:58,920 --> 03:27:59,400 PRESENTATION. 5627 03:27:59,400 --> 03:28:00,920 A LOT OF BLOOD, SWEAT AND TEARS 5628 03:28:00,920 --> 03:28:04,000 ARE PUT INTO THE PROGRAMS. 5629 03:28:04,000 --> 03:28:06,000 WE APPRECIATE THE WORK YOU'RE 5630 03:28:06,000 --> 03:28:06,400 DOING. 5631 03:28:06,400 --> 03:28:07,960 I'LL OPEN UP TO QUESTIONS FROM 5632 03:28:07,960 --> 03:28:10,360 THE GROUP. 5633 03:28:10,360 --> 03:28:15,040 5634 03:28:15,040 --> 03:28:17,560 I'LL START BY ASKING, FOR YOUR 5635 03:28:17,560 --> 03:28:20,400 PROGRAMS, I'LL ASK EACH OF THE 5636 03:28:20,400 --> 03:28:22,040 PANELISTS THE SAME QUESTION, 5637 03:28:22,040 --> 03:28:24,120 WHICH IS IF SOMEONE WERE 5638 03:28:24,120 --> 03:28:26,400 THINKING ABOUT STARTING TO TRAIN 5639 03:28:26,400 --> 03:28:31,200 ADVOCATES, WHAT WOULD BE YOUR 5640 03:28:31,200 --> 03:28:32,760 ADVICE TO THEM? 5641 03:28:32,760 --> 03:28:34,840 I'LL PICK ON RYAN AND ASK IF HE 5642 03:28:34,840 --> 03:28:36,680 MIGHT KICK US OFF WITH THAT. 5643 03:28:36,680 --> 03:28:37,840 >> HAPPY TO. 5644 03:28:37,840 --> 03:28:39,760 PICK ON ME ANYTIME. 5645 03:28:39,760 --> 03:28:43,160 WELL, I WOULD SAY LIKE NOT 5646 03:28:43,160 --> 03:28:44,240 REINVENT THE WHEEL. 5647 03:28:44,240 --> 03:28:45,360 DO A LANDSCAPE ANALYSIS OF 5648 03:28:45,360 --> 03:28:46,640 WHAT'S OUT THERE, WHAT THE NEED 5649 03:28:46,640 --> 03:28:49,800 ARE YOU'RE HEARING FROM YOUR 5650 03:28:49,800 --> 03:28:50,240 ADVOCATES. 5651 03:28:50,240 --> 03:28:56,040 WE ALL REPRESENT DIFFERENT 5652 03:28:56,040 --> 03:29:05,040 ASPECTS OF THE ADVOCACY MANATEE. 5653 03:29:05,040 --> 03:29:06,520 COMMUNITY. 5654 03:29:06,520 --> 03:29:07,440 WE PARTNERED. 5655 03:29:07,440 --> 03:29:09,960 YOU ALREADY HAD AN EXCEPTIONAL 5656 03:29:09,960 --> 03:29:11,840 ADVOCACY TRAINING AND 5657 03:29:11,840 --> 03:29:14,800 RECRUITMENT, ALL THOSE THINGS. 5658 03:29:14,800 --> 03:29:17,320 YOU NEEDED ONE COMPONENT, 5659 03:29:17,320 --> 03:29:19,360 PROGRESS FOR PATIENTS, I WOULD 5660 03:29:19,360 --> 03:29:20,280 ENCOURAGE AS YOU'RE DEVELOPING 5661 03:29:20,280 --> 03:29:21,680 PROGRAMS MAKE THEM KNOWN TO 5662 03:29:21,680 --> 03:29:23,280 PEOPLE BECAUSE AS WE MADE IT 5663 03:29:23,280 --> 03:29:24,280 KNOWN THROUGH THE DEVELOPMENT 5664 03:29:24,280 --> 03:29:25,800 PROS ELSE, IT MADE US CHANGE A 5665 03:29:25,800 --> 03:29:27,680 LITTLE BIT OF HOW WE'RE 5666 03:29:27,680 --> 03:29:29,320 CONSTRUCTING BASED ON WHAT WAS 5667 03:29:29,320 --> 03:29:30,320 ALREADY OUT THERE. 5668 03:29:30,320 --> 03:29:34,640 LESSONS LEARNED THAT OTHERRED A 5669 03:29:34,640 --> 03:29:35,360 VOW INDICATES -- ADVOCATES HAD 5670 03:29:35,360 --> 03:29:37,920 GONE THROUGH BEFORE WE DID AT 5671 03:29:37,920 --> 03:29:39,160 THEIR DISPOSAL. 5672 03:29:39,160 --> 03:29:41,120 >> I'M ADD AS WELL, THINKING 5673 03:29:41,120 --> 03:29:42,840 ABOUT WHAT YOU'RE ANGLE IS. 5674 03:29:42,840 --> 03:29:44,640 CERTAINLY WHEN WE STARTED OUR 5675 03:29:44,640 --> 03:29:47,480 PROGRAM WE KNEW OF THE FRIENDS 5676 03:29:47,480 --> 03:29:48,960 PROGRAM, FOR EXAMPLE, AND IT'S A 5677 03:29:48,960 --> 03:29:51,880 GREAT RESOURCE AND SAW IN 5678 03:29:51,880 --> 03:29:52,840 CHILDHOOD CANCER SPACE THERE 5679 03:29:52,840 --> 03:29:55,800 WASN'T SOMETHING SPECIFIC AND 5680 03:29:55,800 --> 03:29:58,040 FELT THE SPECIFIC SCIENCE BEHIND 5681 03:29:58,040 --> 03:30:00,720 IT, RESEARCH NEEDS, TREATMENT, 5682 03:30:00,720 --> 03:30:01,760 REALLY NEEDED THAT TAILORED 5683 03:30:01,760 --> 03:30:01,960 VOICE. 5684 03:30:01,960 --> 03:30:06,040 THAT WAS THE ANGLE HOW DO WE GET 5685 03:30:06,040 --> 03:30:08,440 SURVIVORS, PARENTS, BETTER 5686 03:30:08,440 --> 03:30:09,680 EQUIPPED, THAT HELPED SHAPE THE 5687 03:30:09,680 --> 03:30:10,880 OVERALL CURRICULUM WE BUILT AND 5688 03:30:10,880 --> 03:30:14,520 HOW WE ROLLED IT OUT AS WELL. 5689 03:30:14,520 --> 03:30:15,160 5690 03:30:15,160 --> 03:30:16,520 >> I DON'T KNOW THAT I HAVE MUCH 5691 03:30:16,520 --> 03:30:20,800 MORE TO ADD TO THAT BUT I AGREE 5692 03:30:20,800 --> 03:30:22,920 WITH RYAN, DEFINITELY DO A 5693 03:30:22,920 --> 03:30:24,800 LANDSCAPE, CHECK THE LAND SCAN 5694 03:30:24,800 --> 03:30:26,560 OF WHAT'S OUT THERE, WHAT'S 5695 03:30:26,560 --> 03:30:28,760 AVAILABLE. 5696 03:30:28,760 --> 03:30:38,480 THERE ARE MANY EMERGING PROGRAMS 5697 03:30:38,480 --> 03:30:42,520 IN CANCER-SPECIFIC OR 5698 03:30:42,520 --> 03:30:43,760 DISEASE-SPECIFIC GROUPS. 5699 03:30:43,760 --> 03:30:45,800 PROJECT LEAD TOOK A LONG TIME TO 5700 03:30:45,800 --> 03:30:51,480 DEVELOP BUT IT'S GONE THROUGH 25 5701 03:30:51,480 --> 03:30:52,160 YEARS-PLUS, RUNNING, YOU CAN 5702 03:30:52,160 --> 03:30:53,920 LEARN FROM OTHER GROUPS WHO HAVE 5703 03:30:53,920 --> 03:30:56,360 DONE THESE TYPES OF PROGRAMS. 5704 03:30:56,360 --> 03:30:57,480 SO I WOULD DEFINITELY ENCOURAGE 5705 03:30:57,480 --> 03:30:59,600 THAT. 5706 03:30:59,600 --> 03:31:02,520 5707 03:31:02,520 --> 03:31:04,200 >> IT'S IMPORTANT TO BE 5708 03:31:04,200 --> 03:31:05,520 FLEXIBLE, JUST BECAUSE ONE OF 5709 03:31:05,520 --> 03:31:07,040 THE MAJOR BARRIERS WE FACED WAS 5710 03:31:07,040 --> 03:31:11,320 TRYING TO DEVELOP A CURRICULUM 5711 03:31:11,320 --> 03:31:12,960 DURING THE PANDEMIC, AND, YOU 5712 03:31:12,960 --> 03:31:14,160 KNOW, ORIGINALLY THE CLINICIANS 5713 03:31:14,160 --> 03:31:17,560 WERE GOING TO BE DOING A LOT OF 5714 03:31:17,560 --> 03:31:19,040 HEAVY LIFTING WITH WRITING BUT 5715 03:31:19,040 --> 03:31:19,960 COVID CAME AND THEY 5716 03:31:19,960 --> 03:31:21,600 UNDERSTANDABLY HAD TO TURN THEIR 5717 03:31:21,600 --> 03:31:22,800 ATTENTION TO PATIENT CARE. 5718 03:31:22,800 --> 03:31:25,960 AND SO WE HAD TO BE CREATIVE 5719 03:31:25,960 --> 03:31:28,360 ABOUT IF WE WERE TO WAIT UNTIL 5720 03:31:28,360 --> 03:31:30,280 COVID ENDED OR UNTIL THEY HAD 5721 03:31:30,280 --> 03:31:31,680 FREE TIME, THE PROGRAM WOULDN'T 5722 03:31:31,680 --> 03:31:34,320 BE DONE STILL AT THIS POINT. 5723 03:31:34,320 --> 03:31:37,000 SO JUST LEARNING HOW TO WORK 5724 03:31:37,000 --> 03:31:39,080 WITH YOUR COMMITTEE, BEING GOOD 5725 03:31:39,080 --> 03:31:40,920 ABOUT COMMITTEE SELECTION, AND 5726 03:31:40,920 --> 03:31:45,160 FIGURING OUT WAYS TO USE ZOOM, 5727 03:31:45,160 --> 03:31:46,640 IT REALLY REQUIRED A LOT OF 5728 03:31:46,640 --> 03:31:49,920 FLEXIBILITY. 5729 03:31:49,920 --> 03:31:50,040 5730 03:31:50,040 --> 03:31:53,640 >> ANNIE? 5731 03:31:53,640 --> 03:31:57,320 VICKIE HAD HER HAND UP FIRST. 5732 03:31:57,320 --> 03:31:58,920 5733 03:31:58,920 --> 03:31:59,240 >> SORRY. 5734 03:31:59,240 --> 03:32:04,880 THANK YOU. 5735 03:32:04,880 --> 03:32:06,920 >> I REALLY LIKED THE WAY 5736 03:32:06,920 --> 03:32:09,360 MICHELE -- THE WAY THE EARLY 5737 03:32:09,360 --> 03:32:12,120 BULLETS TALKED ABOUT THE PATIENT 5738 03:32:12,120 --> 03:32:15,360 ADVOCATE WHO HAS HAD EXPERIENCE 5739 03:32:15,360 --> 03:32:16,280 NOT REPLACEMENT ADVOCATING FOR 5740 03:32:16,280 --> 03:32:18,920 THEIR OWN EXPERIENCE OR 5741 03:32:18,920 --> 03:32:20,400 THEMSELVES PERSONALLY BUT FOR 5742 03:32:20,400 --> 03:32:23,960 THE LARGER COMMUNITY AND HAVING 5743 03:32:23,960 --> 03:32:28,160 THE EXPECTATION SPOKEN THAT YOU 5744 03:32:28,160 --> 03:32:31,200 WERE REPORTING BACK TO SOME 5745 03:32:31,200 --> 03:32:31,400 GROUP. 5746 03:32:31,400 --> 03:32:33,840 I JUST WONDERED, HOW DO YOU 5747 03:32:33,840 --> 03:32:34,640 TEACH THAT? 5748 03:32:34,640 --> 03:32:36,760 HOW DO YOU KIND OF GUARANTEE 5749 03:32:36,760 --> 03:32:37,920 THAT? 5750 03:32:37,920 --> 03:32:40,320 IN THE COMMUNITY THAT I'M IN, 5751 03:32:40,320 --> 03:32:42,360 THE PEOPLE WHO ARE THE MOST 5752 03:32:42,360 --> 03:32:45,840 PASSIONATE ARE ALSO THE ONES 5753 03:32:45,840 --> 03:32:48,280 MOST CONNECTED TO THEIR OWN 5754 03:32:48,280 --> 03:32:50,560 STORY OFTENTIMES, AND I ASSUME 5755 03:32:50,560 --> 03:32:52,000 THAT MEANS AND SARAH AND 5756 03:32:52,000 --> 03:32:52,960 PROBABLY RYAN HAVE SOMETHING TO 5757 03:32:52,960 --> 03:32:55,760 SAY ABOUT THIS AS WELL. 5758 03:32:55,760 --> 03:32:57,000 >> IT'S A GOOD QUESTION. 5759 03:32:57,000 --> 03:32:59,760 I WILL TELL YOU ONE OF THE FIRST 5760 03:32:59,760 --> 03:33:01,920 THINGS THAT ADVOCATES ARE TOLD, 5761 03:33:01,920 --> 03:33:06,200 WHEN THEY -- THE PROGRAM IS 5762 03:33:06,200 --> 03:33:07,760 FACILITATED BY A WONDERFUL 5763 03:33:07,760 --> 03:33:10,160 FACILITATOR, SO THE FIRST 5764 03:33:10,160 --> 03:33:12,160 THING -- ONE OF THE FIRST THINGS 5765 03:33:12,160 --> 03:33:13,000 THEY HEAR WHEN THEY COME TO THE 5766 03:33:13,000 --> 03:33:14,400 PROGRAM IS THIS IS NOT ABOUT 5767 03:33:14,400 --> 03:33:17,480 YOUR DISEASE. 5768 03:33:17,480 --> 03:33:19,360 BECAUSE YOU GET A LOT OF PEOPLE, 5769 03:33:19,360 --> 03:33:20,880 I'VE SEEN IT OVER THE YEARS, 5770 03:33:20,880 --> 03:33:22,960 WILL RAISE THEIR HAND AND ASK A 5771 03:33:22,960 --> 03:33:26,200 QUESTION, WHAT ABOUT THIS? 5772 03:33:26,200 --> 03:33:28,280 SHE HAD TRIPLE NEGATIVE BREAST 5773 03:33:28,280 --> 03:33:29,400 CANCER, INSTILLED VERY EARLY ON 5774 03:33:29,400 --> 03:33:31,560 IN THE TRAINING THAT THIS IS NOT 5775 03:33:31,560 --> 03:33:32,680 ABOUT YOUR BREAST CANCER. 5776 03:33:32,680 --> 03:33:36,080 AND IT COMES WITH THE ADVOCACY 5777 03:33:36,080 --> 03:33:37,120 TRAINING THEY RECEIVE. 5778 03:33:37,120 --> 03:33:39,160 IT'S NOT JUST SCIENCE AND 5779 03:33:39,160 --> 03:33:39,440 EDUCATION. 5780 03:33:39,440 --> 03:33:41,560 I THINK YOU HAVE TO BUILD THAT. 5781 03:33:41,560 --> 03:33:44,280 I'M NOT SAYING THERE'S NOT A 5782 03:33:44,280 --> 03:33:46,880 PLACE FOR INDIVIDUAL PERSONAL 5783 03:33:46,880 --> 03:33:47,320 EXPERIENCES. 5784 03:33:47,320 --> 03:33:48,920 BUT WHEN YOU'RE REPRESENTING A 5785 03:33:48,920 --> 03:33:51,080 CONSTITUENCY IT HAS TO BE IN THE 5786 03:33:51,080 --> 03:33:51,920 BROADER CONTEXT. 5787 03:33:51,920 --> 03:33:56,840 IT'S JUST SOMETHING THAT WE HAD 5788 03:33:56,840 --> 03:33:59,040 TO CONSTANTLY REINSTILL IN 5789 03:33:59,040 --> 03:34:04,520 ADVOCATES AND MODEL THAT IN OUR 5790 03:34:04,520 --> 03:34:05,920 OWN ADVOCACY. 5791 03:34:05,920 --> 03:34:08,280 >> BEFORE I TURN OVER TO ANNIE'S 5792 03:34:08,280 --> 03:34:10,640 QUESTION I WANT TO PIGGYBACK ON 5793 03:34:10,640 --> 03:34:11,760 WHAT MICHELE SAID. 5794 03:34:11,760 --> 03:34:13,160 WE HAVE A RESEARCH EFFICACY 5795 03:34:13,160 --> 03:34:14,000 PROGRAM AS WELL. 5796 03:34:14,000 --> 03:34:17,840 THAT IS A VERY HARD THING TO DO 5797 03:34:17,840 --> 03:34:20,360 TO SWITCH FROM I TO WE. 5798 03:34:20,360 --> 03:34:23,640 AND SO I THINK THERE IS A LOT OF 5799 03:34:23,640 --> 03:34:25,400 VALUE IN THOSE IN-PERSON 5800 03:34:25,400 --> 03:34:27,160 MEETINGS BECAUSE YOU CAN TRULY 5801 03:34:27,160 --> 03:34:30,640 HAVE THEM PRACTICE. 5802 03:34:30,640 --> 03:34:31,760 I KNOW THAT SOUNDS SOMETIMES 5803 03:34:31,760 --> 03:34:33,280 LIKE YOU'RE PUTTING THEM ON THE 5804 03:34:33,280 --> 03:34:37,360 SPOT BUT WE PUT THEM ON THE SPOT 5805 03:34:37,360 --> 03:34:39,160 TO PRACTICE RESPONDING TO 5806 03:34:39,160 --> 03:34:40,760 QUESTIONS, PRACTICE ENGAGING 5807 03:34:40,760 --> 03:34:41,680 WITH SCIENTISTS, TO WHAT NANCY 5808 03:34:41,680 --> 03:34:43,640 WAS TALKING ABOUT EARLIER ABOUT 5809 03:34:43,640 --> 03:34:45,920 THE RESEARCHERS AND HAVING SORT 5810 03:34:45,920 --> 03:34:46,560 OF THAT IN-PERSON WITH 5811 03:34:46,560 --> 03:34:49,120 RESEARCHERS, IT GOES BOTH WAYS. 5812 03:34:49,120 --> 03:34:50,560 RESEARCHERS HAVE TO PRACTICE HOW 5813 03:34:50,560 --> 03:34:52,280 THEY TALK TO PATIENTS. 5814 03:34:52,280 --> 03:34:54,600 AND PATIENTS HAVE TO PRACTICE 5815 03:34:54,600 --> 03:34:56,480 TALKING TO RESEARCHERS. 5816 03:34:56,480 --> 03:34:58,360 AND WE HAD A GREAT MENTOR ONCE, 5817 03:34:58,360 --> 03:35:00,000 EVERY TIME A PATIENT WOULD SAY 5818 03:35:00,000 --> 03:35:02,560 "I" IN THE MIDDLE OF RESPONDING 5819 03:35:02,560 --> 03:35:04,240 SHE WOULD STOP THEM AND THEY 5820 03:35:04,240 --> 03:35:05,280 WOULD HAVE TO RESTART. 5821 03:35:05,280 --> 03:35:11,080 IT MAKES A WORLD OF DIFFERENCE 5822 03:35:11,080 --> 03:35:13,040 GETTING AN OPPORTUNITY TO 5823 03:35:13,040 --> 03:35:13,600 PRACTICE, WITHOUT JUDGMENT, 5824 03:35:13,600 --> 03:35:14,560 WITHOUT BEING ON A PANEL IN 5825 03:35:14,560 --> 03:35:16,440 FRONT OF THE NCI DIRECTOR. 5826 03:35:16,440 --> 03:35:22,760 HAVING THAT FACE TO FACE IS SO 5827 03:35:22,760 --> 03:35:23,360 IMPORTANT. 5828 03:35:23,360 --> 03:35:23,680 ANNIE? 5829 03:35:23,680 --> 03:35:25,920 >> THANK YOU FOR SHARING YOUR 5830 03:35:25,920 --> 03:35:27,160 TREMENDOUS EFFORTS TO EMPOWER 5831 03:35:27,160 --> 03:35:29,960 AROUND EDUCATE THE NEXT 5832 03:35:29,960 --> 03:35:40,760 GENERATION OF -- CONTINUE TO 5833 03:35:40,760 --> 03:35:44,920 EMPOWER ADVOCATES. 5834 03:35:44,920 --> 03:35:50,480 WHEN I WAS GETTING SCREENED, I 5835 03:35:50,480 --> 03:35:51,920 WAS TOLD YOU KNOW YOU'RE READY 5836 03:35:51,920 --> 03:35:56,440 WHEN YOU'RE READY TO TELL OUR 5837 03:35:56,440 --> 03:35:59,160 STORY, INSTEAD OF TELLING MY 5838 03:35:59,160 --> 03:35:59,400 STORY. 5839 03:35:59,400 --> 03:36:02,240 THESE SOFT SKILLS ARE HARDER TO 5840 03:36:02,240 --> 03:36:03,560 PASS ON. 5841 03:36:03,560 --> 03:36:05,600 I'VE LEARNED THROUGH MENTORSHIP. 5842 03:36:05,600 --> 03:36:09,120 I GUESS, YOU KNOW, WE'VE GOT A 5843 03:36:09,120 --> 03:36:12,840 TWO-HOUR PROGRAM, WE'VE GOT FOUR 5844 03:36:12,840 --> 03:36:14,240 HOURS SELF-STUDY, THE SIX-DAY 5845 03:36:14,240 --> 03:36:14,440 THING. 5846 03:36:14,440 --> 03:36:16,640 ONE OF THE THINGS I'VE BEEN 5847 03:36:16,640 --> 03:36:19,080 TRYING TO DO IS TO FIND THE 5848 03:36:19,080 --> 03:36:20,520 MISSING VOICES. 5849 03:36:20,520 --> 03:36:23,040 SO PEOPLE WHO MIGHT NOT BE 5850 03:36:23,040 --> 03:36:25,360 LOCATED BY MAJOR CANCER CENTERS 5851 03:36:25,360 --> 03:36:28,840 OR MAY BE MORE RURAL SO YOU 5852 03:36:28,840 --> 03:36:30,360 DON'T HAVE LIKE ON-SITE LOCAL 5853 03:36:30,360 --> 03:36:34,000 MENTOR TO HELP WALK THEM THROUGH 5854 03:36:34,000 --> 03:36:36,320 OR, YOU KNOW, MAYBE THEIR 5855 03:36:36,320 --> 03:36:38,440 EDUCATION, THEIR HEALTH LITERACY 5856 03:36:38,440 --> 03:36:39,360 MIGHT BE LOWER. 5857 03:36:39,360 --> 03:36:40,760 BUT TRYING TO BRING MISSING 5858 03:36:40,760 --> 03:36:43,000 VOICES TO THE TABLE, WHAT WOULD 5859 03:36:43,000 --> 03:36:48,280 YOU SAY IS LIKE THE BARE MINIMUM 5860 03:36:48,280 --> 03:36:49,760 THAT A NEW ADVOCATE WOULD NEED 5861 03:36:49,760 --> 03:36:52,640 AND HOW MUCH TIME TO INVEST 5862 03:36:52,640 --> 03:36:54,480 BECAUSE, YOU KNOW, YOU HAVE 5863 03:36:54,480 --> 03:36:58,880 SOMEBODY WHO THIS IS KIND OF A 5864 03:36:58,880 --> 03:37:01,520 NEW CONCEPT, SCIENCE, CANCER, 5865 03:37:01,520 --> 03:37:02,960 TALKING TO RESEARCHERS, AND THEN 5866 03:37:02,960 --> 03:37:04,360 THEY INVEST SOME TIME AND THEN 5867 03:37:04,360 --> 03:37:04,920 THEY HATE IT. 5868 03:37:04,920 --> 03:37:09,840 OR, YOU KNOW, IT'S NOT A GOOD 5869 03:37:09,840 --> 03:37:10,000 FIT. 5870 03:37:10,000 --> 03:37:11,040 WHAT WOULD YOU RECOMMEND AS A 5871 03:37:11,040 --> 03:37:12,240 WAY TO HELP SCREEN THAT OR WHAT 5872 03:37:12,240 --> 03:37:13,560 IS THE BARE MINIMUM YOU PUT 5873 03:37:13,560 --> 03:37:17,240 SOMEONE OUT THE DOOR WITH? 5874 03:37:17,240 --> 03:37:20,480 5875 03:37:20,480 --> 03:37:22,720 >> SO, WHEN YOU SAY "PUT THEM 5876 03:37:22,720 --> 03:37:24,040 OUT THE DOOR WITH," YOU MEAN 5877 03:37:24,040 --> 03:37:29,520 ALLOW THEM TO REPRESENT YOU? 5878 03:37:29,520 --> 03:37:32,560 >> WELL, YOU KNOW, SOMETIMES 5879 03:37:32,560 --> 03:37:33,400 BEING IN THE RESEARCH ADVOCATE 5880 03:37:33,400 --> 03:37:36,080 SPACE WHAT I FIND IS A LOT OF 5881 03:37:36,080 --> 03:37:37,360 RESEARCHERS LIKE THE RESEARCH 5882 03:37:37,360 --> 03:37:39,040 ADVOCATES THEY ARE WORKING WITH, 5883 03:37:39,040 --> 03:37:41,400 IT'S LIKE, NO, NO, NO, YOU'RE 5884 03:37:41,400 --> 03:37:43,080 WORKING ON THIS OTHER PROJECT. 5885 03:37:43,080 --> 03:37:43,920 THERE'S PROBABLY A DIFFERENT 5886 03:37:43,920 --> 03:37:46,400 VOICE YOU NEED THAN MINE, RIGHT? 5887 03:37:46,400 --> 03:37:47,840 YOU'RE TRYING TO FIND THE RIGHT 5888 03:37:47,840 --> 03:37:49,480 ADVOCATE COMING FROM A SPACE 5889 03:37:49,480 --> 03:37:51,920 WHERE WE DON'T HAVE -- I'LL BE 5890 03:37:51,920 --> 03:37:52,880 RECOMMENDING A LOT OF THESE 5891 03:37:52,880 --> 03:37:56,480 THINGS FOR PEOPLE TO DO THEIR 5892 03:37:56,480 --> 03:38:00,400 SELF-STUDY BUT IF I'M GOING TO 5893 03:38:00,400 --> 03:38:01,320 RECOMMEND SOMEONE BECAUSE 5894 03:38:01,320 --> 03:38:02,280 THERE'S HEAVY LIFTING, RIGHT IN 5895 03:38:02,280 --> 03:38:07,480 THE THERE IS HEAVY LIFTING IN 5896 03:38:07,480 --> 03:38:10,200 THE RESEARCH ADVOCATE ROLES. 5897 03:38:10,200 --> 03:38:11,240 THERE'S NOT ALWAYS -- MOST OF 5898 03:38:11,240 --> 03:38:12,720 THE TIME THERE'S NOT 5899 03:38:12,720 --> 03:38:13,040 COMPENSATION. 5900 03:38:13,040 --> 03:38:18,000 AND A LOT LOT OF TIMES THERE'S 5901 03:38:18,000 --> 03:38:18,360 CONFIDENTIALITY. 5902 03:38:18,360 --> 03:38:21,320 YOU CAN'T EVEN PUT IT ON 5903 03:38:21,320 --> 03:38:21,760 TWITTER, RIGHT? 5904 03:38:21,760 --> 03:38:22,800 THERE'S A LOT OF WORK WITH MAYBE 5905 03:38:22,800 --> 03:38:24,720 NOT A LOT OF PUBLIC REWARD. 5906 03:38:24,720 --> 03:38:29,000 SOME OF THE PEOPLE I KNOW, I'VE 5907 03:38:29,000 --> 03:38:30,240 MENTORED LOVE IT, CAN'T GET 5908 03:38:30,240 --> 03:38:30,880 ENOUGH OF IT. 5909 03:38:30,880 --> 03:38:32,560 YOU KNOW WHO THEY ARE. 5910 03:38:32,560 --> 03:38:34,720 EVERYONE HERE IS PROBABLY ONE OF 5911 03:38:34,720 --> 03:38:34,920 THOSE. 5912 03:38:34,920 --> 03:38:37,520 AGAIN, TRYING TO RECRUIT THE 5913 03:38:37,520 --> 03:38:38,640 VOICES THAT ARE MISSING, PEOPLE 5914 03:38:38,640 --> 03:38:44,160 WHO SHOULD BE AT THE TABLE 5915 03:38:44,160 --> 03:38:46,680 TRYING TO NURTURE THIS TYPE OF 5916 03:38:46,680 --> 03:38:49,680 THING, I'LL GIVE AN EXAMPLE. 5917 03:38:49,680 --> 03:38:53,160 IN OUR WORLD WE'VE GOT A LOT OF 5918 03:38:53,160 --> 03:38:55,440 PEOPLE TURNING TO COMPLEMENTARY 5919 03:38:55,440 --> 03:38:57,800 MEDICINE AND SUPPLEMENTS, AND 5920 03:38:57,800 --> 03:39:01,160 NOT EVIDENCE-BASED STUFF. 5921 03:39:01,160 --> 03:39:02,720 LIKE, YOU KNOW, LIKE HOW THIS IS 5922 03:39:02,720 --> 03:39:05,560 DIFFERENT, YOU KNOW, THIS IS 5923 03:39:05,560 --> 03:39:06,800 EVIDENCE-BASED MEDICINE, RIGHT? 5924 03:39:06,800 --> 03:39:11,160 YOU KNOW, WE'VE GOT RESEARCH 5925 03:39:11,160 --> 03:39:12,560 ADVOCACY NETWORK, IT'S A LOT. 5926 03:39:12,560 --> 03:39:16,760 WHERE IS THE BAR? 5927 03:39:16,760 --> 03:39:23,920 YOU KNOW, I KNOW -- I GUESS -- 5928 03:39:23,920 --> 03:39:26,560 YOU KNOW, WHAT'S YOUR COMFORT 5929 03:39:26,560 --> 03:39:28,000 LEVEL IN SENDING SOMEONE OUT? 5930 03:39:28,000 --> 03:39:29,640 IT'S NOT GOING TO HAPPEN IN OUR 5931 03:39:29,640 --> 03:39:32,040 COMMUNITY BECAUSE WE JUST DON'T 5932 03:39:32,040 --> 03:39:35,120 HAVE THE MONEY FOR IT UNLESS 5933 03:39:35,120 --> 03:39:38,480 THERE WERE MUTATION CARRIER CAN 5934 03:39:38,480 --> 03:39:41,080 ALSO GO TO GET A SCHOLARSHIP, 5935 03:39:41,080 --> 03:39:41,280 BUT -- 5936 03:39:41,280 --> 03:39:43,480 >> EVEN WITH PROJECT LEAD, I 5937 03:39:43,480 --> 03:39:45,000 THINK IT DEPENDS ON WHAT -- 5938 03:39:45,000 --> 03:39:46,560 THERE ARE A COUPLE THINGS. 5939 03:39:46,560 --> 03:39:50,920 FIRST OF ALL, I'LL SAY THAT WE 5940 03:39:50,920 --> 03:39:52,520 HAVE -- WE RECRUIT BROADLY, 5941 03:39:52,520 --> 03:39:53,640 FINANCE, WHERE YOU LIVE DOES NOT 5942 03:39:53,640 --> 03:39:55,960 INFLUENCE WHETHER OR NOT YOU GET 5943 03:39:55,960 --> 03:39:57,520 INTO IT. 5944 03:39:57,520 --> 03:39:59,920 IT'S ALL SCHOLARSHIP BASED. 5945 03:39:59,920 --> 03:40:02,600 SO IT'S HARD THOUGH FOR YOUNGER 5946 03:40:02,600 --> 03:40:05,120 WOMEN WHO HAVE FAMILIES TO LEAVE 5947 03:40:05,120 --> 03:40:06,560 FOR A WEEK. 5948 03:40:06,560 --> 03:40:09,280 BUT SO WE DEFINITELY TRY TO GET 5949 03:40:09,280 --> 03:40:09,920 THOSE VOICES. 5950 03:40:09,920 --> 03:40:13,120 WE TRY VERY HARD TO MAKE SURE 5951 03:40:13,120 --> 03:40:15,000 THAT WE'RE REPRESENTING THE 5952 03:40:15,000 --> 03:40:17,240 DIVERSITY OF BREAST CANCER. 5953 03:40:17,240 --> 03:40:21,320 AND EVEN MEN WHO COME TO PROJECT 5954 03:40:21,320 --> 03:40:21,720 LEAD. 5955 03:40:21,720 --> 03:40:26,200 IN TERMS OF AFTER PROJECT LEAD, 5956 03:40:26,200 --> 03:40:28,520 WE'RE NOT READY TO SEND THEM ON 5957 03:40:28,520 --> 03:40:31,880 THEIR WAY TO DO THIS, THAT, AND 5958 03:40:31,880 --> 03:40:32,440 THE OTHER. 5959 03:40:32,440 --> 03:40:34,400 FOR US, IT DEPENDS ON THE 5960 03:40:34,400 --> 03:40:34,760 ACTIVITY. 5961 03:40:34,760 --> 03:40:37,360 YOU KNOW, THERE ARE MANY 5962 03:40:37,360 --> 03:40:39,120 DIFFERENT ACTIVITIES. 5963 03:40:39,120 --> 03:40:40,440 OTHERS WILL PROBABLY SAY THE 5964 03:40:40,440 --> 03:40:42,280 SAME, BUT WE GET REQUESTS FOR 5965 03:40:42,280 --> 03:40:44,440 ALL KINDS OF THINGS. 5966 03:40:44,440 --> 03:40:46,400 THERE ARE ONLY -- DEPENDING ON 5967 03:40:46,400 --> 03:40:50,200 WHAT THE ACTIVITY IS, WE -- YOU 5968 03:40:50,200 --> 03:40:52,360 KNOW, WE HAVE TO FEEL 5969 03:40:52,360 --> 03:40:53,320 COMFORTABLE WITH THE ADVOCATE. 5970 03:40:53,320 --> 03:40:56,040 AGAIN, THEY ARE GOING TO BE 5971 03:40:56,040 --> 03:40:58,240 SPEAKING AS A CONSTITUENCY OF 5972 03:40:58,240 --> 03:40:59,880 ADVOCATES, NOT ABOUT THEMSELVES. 5973 03:40:59,880 --> 03:41:04,440 IT'S NOT THEIR OWN KIND OF -- 5974 03:41:04,440 --> 03:41:08,160 YOU KNOW, IT'S HARD TO PUT 5975 03:41:08,160 --> 03:41:09,160 QUANTITATIVELY DETERMINE THAT. 5976 03:41:09,160 --> 03:41:11,640 BUT IT'S ABOUT WHO IS 5977 03:41:11,640 --> 03:41:12,240 PARTICIPATING. 5978 03:41:12,240 --> 03:41:13,640 WHO IS ACTIVELY ENGAGING. 5979 03:41:13,640 --> 03:41:16,240 LIKE IN OUR ONGOING TRAINING AND 5980 03:41:16,240 --> 03:41:18,120 OUR WEBINARS, WHO IS INVOLVED 5981 03:41:18,120 --> 03:41:19,920 AND COMES TO OUR SUMMIT AND DOES 5982 03:41:19,920 --> 03:41:22,160 SOME OF THE OTHER ACTIVITIES. 5983 03:41:22,160 --> 03:41:25,800 THAT'S HOW WE GET A BETTER GRASP 5984 03:41:25,800 --> 03:41:28,000 OF WHEN SOMEBODY'S REALLY READY 5985 03:41:28,000 --> 03:41:28,520 TO PARTICIPATE. 5986 03:41:28,520 --> 03:41:31,720 AND THERE ARE MANY THAT COME TO 5987 03:41:31,720 --> 03:41:33,240 PROJECT LEAD WHO ARE INCREDIBLY 5988 03:41:33,240 --> 03:41:34,640 SHARP AND SAVVY. 5989 03:41:34,640 --> 03:41:36,720 THEY DON'T NECESSARILY STAY 5990 03:41:36,720 --> 03:41:37,280 CONNECTED WITH NBCC. 5991 03:41:37,280 --> 03:41:40,280 THEY GO OUT AND GET INVOLVED. 5992 03:41:40,280 --> 03:41:42,560 AND THAT'S FINE TOO. 5993 03:41:42,560 --> 03:41:43,640 BUT, YOU KNOW, I DON'T KNOW IF 5994 03:41:43,640 --> 03:41:44,040 THAT HELPS. 5995 03:41:44,040 --> 03:41:45,880 I DON'T KNOW WHAT OTHERS HAVE TO 5996 03:41:45,880 --> 03:41:46,280 SAY. 5997 03:41:46,280 --> 03:41:48,080 >> YEAH, I WOULD SAY IT'S REALLY 5998 03:41:48,080 --> 03:41:50,320 LIKE WE KIND OF LET THE 5999 03:41:50,320 --> 03:41:51,240 INDIVIDUAL DECIDE WHEN THEY ARE 6000 03:41:51,240 --> 03:41:51,880 READY. 6001 03:41:51,880 --> 03:41:54,400 AND WHAT THEY ARE READY FOR. 6002 03:41:54,400 --> 03:41:56,800 I DON'T THINK WE PUT -- WE'VE 6003 03:41:56,800 --> 03:41:58,960 NEVER TRIED HONESTLY TO PUT A 6004 03:41:58,960 --> 03:41:59,160 BAR. 6005 03:41:59,160 --> 03:42:02,280 THE ONLY BARS AND GUIDELINES WE 6006 03:42:02,280 --> 03:42:04,760 DO IS IF THE OPPORTUNITY, SAY, 6007 03:42:04,760 --> 03:42:06,200 REQUIRES OR IS ASKING FOR 6008 03:42:06,200 --> 03:42:08,600 SOMEONE THAT'S BEEN THROUGH A 6009 03:42:08,600 --> 03:42:09,360 CLINICAL TRIAL THEMSELVES, 6010 03:42:09,360 --> 03:42:11,000 THAT'S WHERE I SLIGHTLY DISAGREE 6011 03:42:11,000 --> 03:42:12,520 WITH SOME OF THE CONVERSATION 6012 03:42:12,520 --> 03:42:14,760 AROUND REMOVING THE I FROM THE 6013 03:42:14,760 --> 03:42:15,320 CONVERSATION. 6014 03:42:15,320 --> 03:42:16,960 OFTEN TIMES THE I IN THE 6015 03:42:16,960 --> 03:42:18,760 CONVERSATION IS REALLY WHAT 6016 03:42:18,760 --> 03:42:20,320 CHANGES THE TRAJECTORY OF A 6017 03:42:20,320 --> 03:42:22,960 CLINICAL TRIAL THAT'S HAPPENING. 6018 03:42:22,960 --> 03:42:26,920 IF IT'S THIS DID NOT WORK FOR ME 6019 03:42:26,920 --> 03:42:28,880 DURING THIS TRIAL, IT'S AN I 6020 03:42:28,880 --> 03:42:29,640 STATEMENT, BUT THAT CAN CHANGE 6021 03:42:29,640 --> 03:42:31,720 THE NEXT LEVEL OF TRIAL TO BE 6022 03:42:31,720 --> 03:42:33,000 MORE ADAPTIVE AND MORE REALISTIC 6023 03:42:33,000 --> 03:42:34,120 FOR FUTURE PATIENTS. 6024 03:42:34,120 --> 03:42:36,760 SO I THINK THERE IS A BALANCE 6025 03:42:36,760 --> 03:42:36,960 THERE. 6026 03:42:36,960 --> 03:42:38,160 I THINK THE INDIVIDUAL AT LEAST 6027 03:42:38,160 --> 03:42:40,440 FOR US, FOR THE OPPORTUNITIES WE 6028 03:42:40,440 --> 03:42:41,840 MATCH-MAKE AND LIKE TO DO AND 6029 03:42:41,840 --> 03:42:47,680 STRIVE TO DO IS BE BRUTALLY 6030 03:42:47,680 --> 03:42:49,920 HONEST AND LET THE PERSON 6031 03:42:49,920 --> 03:42:50,600 PRE-DETERMINE THEM. 6032 03:42:50,600 --> 03:42:53,640 >> FOR OUR PROGRAM BECAUSE WE'RE 6033 03:42:53,640 --> 03:42:59,880 SO NEW, INVITATION ONLY, WE 6034 03:42:59,880 --> 03:43:03,360 LOOKED AT WHO, IT'S FOUR HOURS, 6035 03:43:03,360 --> 03:43:05,440 MATERIAL CAN BE QUITE INVOLVED. 6036 03:43:05,440 --> 03:43:06,200 AND SO MAKING SURE WE WERE 6037 03:43:06,200 --> 03:43:07,640 STARTING WITH A GROUP OF FOLKS 6038 03:43:07,640 --> 03:43:12,040 THAT WERE ALREADY INTERESTED IN 6039 03:43:12,040 --> 03:43:14,440 RESEARCH, FOR A LONG TIME, AND 6040 03:43:14,440 --> 03:43:16,840 SO THE HOPE IS THAT WE HAVE 6041 03:43:16,840 --> 03:43:21,800 OTHER COHORTS OF FOLKS THAT 6042 03:43:21,800 --> 03:43:24,240 WE'LL BE REACHING BUT OUR 6043 03:43:24,240 --> 03:43:26,920 LONG-TERM GOAL IS TO PUT THIS ON 6044 03:43:26,920 --> 03:43:30,000 THE WEBSITE, GET FREE ACCESS TO 6045 03:43:30,000 --> 03:43:32,080 ANYBODY IN THE COMMUNITY. 6046 03:43:32,080 --> 03:43:34,040 THE CAVEAT IS WE THEN LOSE A 6047 03:43:34,040 --> 03:43:38,080 LITTLE BIT OF CONTROL OF WHO WE 6048 03:43:38,080 --> 03:43:39,000 CAN RECOMMEND MOVING FORWARD, IF 6049 03:43:39,000 --> 03:43:40,160 THEY ARE A GRADUATE OF THE OUR 6050 03:43:40,160 --> 03:43:41,640 PROGRAM WE KNOW THEM GOING INTO 6051 03:43:41,640 --> 03:43:44,160 IT, WE KNOW THEY ARE ROCK STARS 6052 03:43:44,160 --> 03:43:45,920 THROUGH AND THROUGH AND HAD 6053 03:43:45,920 --> 03:43:48,160 EXTRA TRAINING WHICH MAKE THEM 6054 03:43:48,160 --> 03:43:51,000 EVEN MORE READY TO REPRESENT THE 6055 03:43:51,000 --> 03:43:52,920 COMMUNITY IN MORE FORMAL 6056 03:43:52,920 --> 03:43:53,920 SETTING, WHEN IT'S MORE PUBLICLY 6057 03:43:53,920 --> 03:43:58,840 AVAILABLE WE HOPE TO MAKE IT, 6058 03:43:58,840 --> 03:44:01,400 THAT COULD IMPACT WHO WE REFER 6059 03:44:01,400 --> 03:44:04,920 TO ANY NCI MANUAL OR TO DoD OR 6060 03:44:04,920 --> 03:44:06,200 RESEARCHES, THINGS LIKE THAT. 6061 03:44:06,200 --> 03:44:07,840 IT'S A FINE LIKE WE'RE WALKING 6062 03:44:07,840 --> 03:44:10,920 BUT TO THE POINT ALREADY MADE, 6063 03:44:10,920 --> 03:44:12,560 WE FOUND THAT PEOPLE HAVE BEEN 6064 03:44:12,560 --> 03:44:15,160 WITH US FOR A WHILE. 6065 03:44:15,160 --> 03:44:15,800 THEY ARE PROBABLY READY TO DO 6066 03:44:15,800 --> 03:44:16,960 MORE. 6067 03:44:16,960 --> 03:44:18,320 PEOPLE ARE HUNGRY FOR THE NEXT 6068 03:44:18,320 --> 03:44:19,720 STEP, WE'RE HAPPY TO GIVE THEM 6069 03:44:19,720 --> 03:44:26,000 SOMETHING NEW TO TRY OUT. 6070 03:44:26,000 --> 03:44:27,400 THANK YOU SO MUCH. 6071 03:44:27,400 --> 03:44:28,960 >> DO WE HAVE ANY MORE 6072 03:44:28,960 --> 03:44:31,680 QUESTIONS? 6073 03:44:31,680 --> 03:44:32,520 YES, VICKIE? 6074 03:44:32,520 --> 03:44:36,680 >> I WAS GOING TO SAY ONE THING 6075 03:44:36,680 --> 03:44:38,120 THAT THE CHILDHOOD CANCER 6076 03:44:38,120 --> 03:44:38,920 COMMUNITY HAS THAT'S A LITTLE 6077 03:44:38,920 --> 03:44:42,080 BIT DIFFERENT THAT WE HAVE TO BE 6078 03:44:42,080 --> 03:44:43,000 AWARE OF, I'VE TALKED TO SARAH 6079 03:44:43,000 --> 03:44:48,920 ABOUT THIS IN THE PAST, BUT IN 6080 03:44:48,920 --> 03:44:51,880 MOST SITUATIONS YOU DON'T HAVE 6081 03:44:51,880 --> 03:44:53,520 THE BEREAVED ELEMENT AS A 6082 03:44:53,520 --> 03:44:58,520 POTENTIAL PART OF THE ADVOCATE 6083 03:44:58,520 --> 03:45:01,240 COMMUNITY BECAUSE -- MAYBE YOU 6084 03:45:01,240 --> 03:45:03,880 DO HAVE SPOUSES THAT TRAINED TO 6085 03:45:03,880 --> 03:45:05,320 BECOME RESEARCH ADVOCATES IN 6086 03:45:05,320 --> 03:45:08,120 YOUR PROGRAMS BUT IT REALLY IS A 6087 03:45:08,120 --> 03:45:12,360 RATHER LARGE -- A LOT OF THE 6088 03:45:12,360 --> 03:45:14,800 VERY -- ADVOCATES WHO ARE 6089 03:45:14,800 --> 03:45:16,200 INTERESTED IN ADVOCATING ARE 6090 03:45:16,200 --> 03:45:18,320 AFTER THEIR CHILDREN HAVE DIED 6091 03:45:18,320 --> 03:45:21,440 AND THEY BURN PRETTY HOT FOR A 6092 03:45:21,440 --> 03:45:21,880 WHILE. 6093 03:45:21,880 --> 03:45:25,080 IT'S JUST ANOTHER CONSIDERATION 6094 03:45:25,080 --> 03:45:28,120 THAT I THINK ST BALDRICK'S HAS 6095 03:45:28,120 --> 03:45:29,880 BEEN GUARDING AGAINST BY USING 6096 03:45:29,880 --> 03:45:30,960 THE INVITATION BUT IT'S 6097 03:45:30,960 --> 03:45:35,000 SOMETHING THAT WE HAVE TO BE 6098 03:45:35,000 --> 03:45:36,440 ESPECIALLY AWARE OF. 6099 03:45:36,440 --> 03:45:39,280 >> THAT'S A GREAT POINT, VICKIE. 6100 03:45:39,280 --> 03:45:40,960 IT'S INTERESTING THAT ACTUALLY 6101 03:45:40,960 --> 03:45:43,120 40% OF OUR GRADUATES ARE 6102 03:45:43,120 --> 03:45:44,480 BEREAVED PARENTS WHO LOST A 6103 03:45:44,480 --> 03:45:45,800 CHILD TO CANCER. 6104 03:45:45,800 --> 03:45:49,520 AND WHO WANT SO MUCH TO BE 6105 03:45:49,520 --> 03:45:51,120 INVOLVED AND PREVENT OTHER 6106 03:45:51,120 --> 03:45:51,840 FAMILIES FROM EXPERIENCING THE 6107 03:45:51,840 --> 03:45:55,200 SAME LOSS THAT THEY DID. 6108 03:45:55,200 --> 03:45:59,760 AND REALLY THEIR PASSION IS JUST 6109 03:45:59,760 --> 03:46:01,200 UNPARALLELED. 6110 03:46:01,200 --> 03:46:02,920 AND SO I WAS REALLY SURPRISED 6111 03:46:02,920 --> 03:46:04,680 AND INTERESTED BY THE FACT HOW 6112 03:46:04,680 --> 03:46:08,520 REVVED UP AND GUNG HO OUR 6113 03:46:08,520 --> 03:46:09,640 BEREAVED PARENTS ARE TO 6114 03:46:09,640 --> 03:46:10,520 PARTICIPATE IN THIS. 6115 03:46:10,520 --> 03:46:12,160 >> THAT'S THE OTHER PIECE THAT'S 6116 03:46:12,160 --> 03:46:14,800 INTERESTING FROM THE CHILDHOOD 6117 03:46:14,800 --> 03:46:16,200 CANCER PERSPECTIVE. 6118 03:46:16,200 --> 03:46:17,520 OFTENTIMES UNLESS THEY ARE 6119 03:46:17,520 --> 03:46:18,520 SURVIVORS AND OLDER, PEOPLE 6120 03:46:18,520 --> 03:46:19,520 REPRESENTING THE COMMUNITY ON 6121 03:46:19,520 --> 03:46:21,880 THESE PANELS ARE NOT THE 6122 03:46:21,880 --> 03:46:22,400 PATIENTS THEMSELVES. 6123 03:46:22,400 --> 03:46:24,960 AND SO IT'S EITHER THE BEREAVED 6124 03:46:24,960 --> 03:46:27,240 PARENT OR CAREGIVER OR 6125 03:46:27,240 --> 03:46:30,120 SOMETHING, SOMEONE RELATED BUT 6126 03:46:30,120 --> 03:46:31,200 NOT DIRECTLY NECESSARILY, THAT'S 6127 03:46:31,200 --> 03:46:32,400 JUST ANOTHER NUANCE WHY WE 6128 03:46:32,400 --> 03:46:33,520 THOUGHT THE PROGRAM WAS SO 6129 03:46:33,520 --> 03:46:35,600 IMPORTANT TO HAVE BECAUSE THAT 6130 03:46:35,600 --> 03:46:37,200 PERSPECTIVE IS DIFFERENT AND 6131 03:46:37,200 --> 03:46:39,320 WHAT YOU'RE WITNESSING VERSUS 6132 03:46:39,320 --> 03:46:40,320 EXPERIENCING YOURSELF, BUT WE 6133 03:46:40,320 --> 03:46:42,120 ALSO HAVE TRIED TO RECRUIT SOME 6134 03:46:42,120 --> 03:46:43,480 OF THE SURVIVORS IN OUR 6135 03:46:43,480 --> 03:46:44,320 COMMUNITY AS WHOLE HAVE BEEN 6136 03:46:44,320 --> 03:46:46,680 INVOLVED FOR A LONG TIME TO MAKE 6137 03:46:46,680 --> 03:46:49,000 SURE WE'RE ROUNDING THAT OUT OF 6138 03:46:49,000 --> 03:46:51,400 HAVING THAT PARENT PERSPECTIVE, 6139 03:46:51,400 --> 03:46:53,720 BEREAVED PART PERSPECTIVE, 6140 03:46:53,720 --> 03:46:54,280 CHILDHOOD CANCER SURVIVOR 6141 03:46:54,280 --> 03:46:56,440 PERSPECTIVE, THE TEEN AND YOUNG 6142 03:46:56,440 --> 03:46:58,520 ADULT SURVIVOR PERSPECTIVE, ALL 6143 03:46:58,520 --> 03:47:00,120 OF THAT INTERMIXED WHICH HAS 6144 03:47:00,120 --> 03:47:01,600 MADE FOR, YOU KNOW, A LONGER 6145 03:47:01,600 --> 03:47:04,520 PROGRAM IN A CERTAIN WAY, BUT 6146 03:47:04,520 --> 03:47:07,520 ALSO HOPEFULLY PRODUCING 6147 03:47:07,520 --> 03:47:09,320 ADVOCATES TO PROVIDE A NUANCED 6148 03:47:09,320 --> 03:47:14,160 PERSPECTIVE WHEN CALLED ON. 6149 03:47:14,160 --> 03:47:24,800 6150 03:47:24,800 --> 03:47:25,120 >> KEVIN? 6151 03:47:25,120 --> 03:47:28,280 >> I APPRECIATE THE OF THIS -- 6152 03:47:28,280 --> 03:47:29,960 I APPRECIATE THIS TODAY. 6153 03:47:29,960 --> 03:47:31,840 IN THE CANCERS WITH NOT GREAT 6154 03:47:31,840 --> 03:47:33,760 SURVIVAL RATES MANY TIMES THERE 6155 03:47:33,760 --> 03:47:34,880 ARE OFTEN FAMILY MEMBERS OR 6156 03:47:34,880 --> 03:47:39,080 SIBLINGS THAT WILL TURN AROUND 6157 03:47:39,080 --> 03:47:40,760 AND BE THE ADVOCATE, I'VE SEEN 6158 03:47:40,760 --> 03:47:42,320 ABUNDANCE OF THAT IN MY 6159 03:47:42,320 --> 03:47:42,600 EXPERIENCE. 6160 03:47:42,600 --> 03:47:45,480 BUT I DID WANT TO THANK THE 6161 03:47:45,480 --> 03:47:46,680 PRESENTERS TODAY FOR HELPING 6162 03:47:46,680 --> 03:47:46,960 OUT. 6163 03:47:46,960 --> 03:47:49,600 I'M NOT VERY WELL VERSED IN SUCH 6164 03:47:49,600 --> 03:47:49,920 AREAS. 6165 03:47:49,920 --> 03:47:51,800 NOT ONLY THE PRESENTERS WITH 6166 03:47:51,800 --> 03:47:52,920 GREAT PROGRAMS BUT MY COLLEAGUES 6167 03:47:52,920 --> 03:47:54,840 ON THE COMMITTEE WHO KNOW WHO 6168 03:47:54,840 --> 03:47:57,120 SOME OF THESE PEOPLE ARE. 6169 03:47:57,120 --> 03:47:58,680 AND THEIR ABILITY TO BE VERY 6170 03:47:58,680 --> 03:48:00,520 WELL VERSED IN SUCH AREAS. 6171 03:48:00,520 --> 03:48:01,680 I GREATLY FOUND THIS VALUABLE. 6172 03:48:01,680 --> 03:48:04,360 THANK YOU. 6173 03:48:04,360 --> 03:48:08,520 6174 03:48:08,520 --> 03:48:08,880 6175 03:48:08,880 --> 03:48:11,560 >> I WANT TO THANK OUR PANELISTS 6176 03:48:11,560 --> 03:48:13,800 FOR JOINING US AND SHARING THEIR 6177 03:48:13,800 --> 03:48:14,400 PROGRAMS. 6178 03:48:14,400 --> 03:48:16,200 I THINK IT WAS REALLY VALUABLE 6179 03:48:16,200 --> 03:48:18,520 TO BE ABLE TO OUTLINE HOW MUCH 6180 03:48:18,520 --> 03:48:20,320 WORK GOES INTO THESE PROGRAMS, 6181 03:48:20,320 --> 03:48:22,720 THE CHALLENGES, HOW YOU'VE BEEN 6182 03:48:22,720 --> 03:48:24,480 ABLE TO SUSTAIN AND COLLABORATE 6183 03:48:24,480 --> 03:48:29,520 WHAT I HEARD ACROSS EVERYTHING 6184 03:48:29,520 --> 03:48:30,400 IS RESEARCH ADVOCACY IS SO 6185 03:48:30,400 --> 03:48:30,840 IMPORTANT. 6186 03:48:30,840 --> 03:48:32,280 THANK YOU FOUR SHARING THE WORK 6187 03:48:32,280 --> 03:48:36,320 THAT YOU'RE DOING. 6188 03:48:36,320 --> 03:48:38,360 >> THANKS, EVERYONE. 6189 03:48:38,360 --> 03:48:44,400 THANKS, ANNUAL GEE. GEE ANJEE. 6190 03:48:44,400 --> 03:48:46,480 >> NEXT, WE HAVE CLOSING 6191 03:48:46,480 --> 03:48:46,680 REMARKS? 6192 03:48:46,680 --> 03:48:54,320 AND VOTES, IS THAT CORRECT? 6193 03:48:54,320 --> 03:48:55,400 >> I'M GOING TO TURN IT OVER TO 6194 03:48:55,400 --> 03:48:55,600 YOU. 6195 03:48:55,600 --> 03:48:58,120 I APPRECIATE ALL THE PANELISTS, 6196 03:48:58,120 --> 03:48:59,920 JUST TO DOUBLE BACK ON ANJEE'S 6197 03:48:59,920 --> 03:49:01,760 COMMENTS FOR TAKING TIME TO BE 6198 03:49:01,760 --> 03:49:04,720 WITH US TODAY AND SORT OF HAVING 6199 03:49:04,720 --> 03:49:06,920 AN OPEN DISCUSSION, BECAUSE 6200 03:49:06,920 --> 03:49:08,320 TRAINING IS SO IMPORTANT IN THE 6201 03:49:08,320 --> 03:49:09,120 ADVOCACY COMMUNITY. 6202 03:49:09,120 --> 03:49:11,320 WE'RE LOOKING TO TRAIN THE NEXT 6203 03:49:11,320 --> 03:49:13,120 GENERATION AND BRING MORE 6204 03:49:13,120 --> 03:49:15,000 DIVERSITY TO OUR RESEARCH 6205 03:49:15,000 --> 03:49:15,880 ADVOCACY WORKFORCE. 6206 03:49:15,880 --> 03:49:17,400 THESE TRAININGS ARE SORT OF AN 6207 03:49:17,400 --> 03:49:20,920 IMPORTANT TOUCH POINT IN THAT 6208 03:49:20,920 --> 03:49:21,240 PIPELINE. 6209 03:49:21,240 --> 03:49:24,920 THANK YOU BOTH BOARD MEMBERS FOR 6210 03:49:24,920 --> 03:49:26,320 YOUR THOUGHTS AND PANELISTSES 6211 03:49:26,320 --> 03:49:27,320 FOR YOUR PRESENTATIONS AND FOR 6212 03:49:27,320 --> 03:49:30,880 THE DISCUSSION. 6213 03:49:30,880 --> 03:49:33,280 AND WITH THAT, ANJEE, WE'LL MOVE 6214 03:49:33,280 --> 03:49:39,360 TO OUR LAST SECTION OF TODAY. 6215 03:49:39,360 --> 03:49:40,280 WE HAVE SOME ADMINISTRATIVE 6216 03:49:40,280 --> 03:49:45,560 ITEMS TO TAKE CARE OF. 6217 03:49:45,560 --> 03:49:46,680 APPROVING THE MEETING SUMMARY 6218 03:49:46,680 --> 03:49:48,160 FROM THE LAST MEETING. 6219 03:49:48,160 --> 03:49:49,920 ANJEE, I'LL TURN THAT OVER TO 6220 03:49:49,920 --> 03:49:51,680 YOU TO DO AND CLOSE US OUT. 6221 03:49:51,680 --> 03:49:55,400 >> I THINK WE HAVE A MOTION TO 6222 03:49:55,400 --> 03:49:58,480 APPROVE THE 84th NCRA MEETING, 6223 03:49:58,480 --> 03:50:00,560 I ASK A MEMBER TO MOTION TO 6224 03:50:00,560 --> 03:50:04,040 APPROVE AND CALL FOR A MEMBER TO 6225 03:50:04,040 --> 03:50:04,280 SECOND. 6226 03:50:04,280 --> 03:50:05,560 >> I'LL MOVE. 6227 03:50:05,560 --> 03:50:07,160 >> MOTION TO APPROVE. 6228 03:50:07,160 --> 03:50:08,560 >> I'LL SECOND. 6229 03:50:08,560 --> 03:50:08,920 >> EXCELLENT. 6230 03:50:08,920 --> 03:50:10,800 THANK YOU. 6231 03:50:10,800 --> 03:50:13,120 THANK YOU, JENNIFER, ANNIE. 6232 03:50:13,120 --> 03:50:14,320 AND THEN REALLY WANT TO THANK 6233 03:50:14,320 --> 03:50:18,200 YOU, I WANT TO THANK EVERYONE 6234 03:50:18,200 --> 03:50:19,240 FOR PARTICIPATING, MAKING 6235 03:50:19,240 --> 03:50:20,200 SUGGESTIONS. 6236 03:50:20,200 --> 03:50:22,960 WE'VE BEEN REACHING OUT TO 6237 03:50:22,960 --> 03:50:25,160 MEMBERS TO SUGGEST SPEAKERS AND 6238 03:50:25,160 --> 03:50:29,560 POTENTIAL MEMBERS TO JOIN THE 6239 03:50:29,560 --> 03:50:30,440 COUNCIL. 6240 03:50:30,440 --> 03:50:31,680 I APPRECIATE YOUR FEEDBACK, 6241 03:50:31,680 --> 03:50:33,120 IDEAS, SUGGESTIONS, AS WE START 6242 03:50:33,120 --> 03:50:35,920 THINKING ABOUT OUR NEXT MEETING, 6243 03:50:35,920 --> 03:50:37,320 IF ADDITIONAL IDEAS COME TO MIND 6244 03:50:37,320 --> 03:50:39,480 PLEASE DO SHARE THAT WITH US. 6245 03:50:39,480 --> 03:50:41,440 I KNOW AMY AND VINCENT ARE 6246 03:50:41,440 --> 03:50:43,240 ALWAYS ON TOP OF EVERYTHING THAT 6247 03:50:43,240 --> 03:50:46,200 WE'RE DOING AND TRYING TO CRAFT 6248 03:50:46,200 --> 03:50:49,920 AND PULL IN THE DIRECTORS AND 6249 03:50:49,920 --> 03:50:51,680 NCI LEADERSHIP TO OUR CALLS THAT 6250 03:50:51,680 --> 03:50:54,480 WILL MAKE THE BEST CONNECTIONS 6251 03:50:54,480 --> 03:50:55,720 FOR THIS GROUP. 6252 03:50:55,720 --> 03:50:58,440 I REALLY THANK YOU FOR YOUR 6253 03:50:58,440 --> 03:50:59,000 TIME. 6254 03:50:59,000 --> 03:50:59,720 YOU STUCK IT OUT. 6255 03:50:59,720 --> 03:51:01,360 THANK YOU FOR BEING ON THE CALL 6256 03:51:01,360 --> 03:51:02,160 THE WHOLE TIME. 6257 03:51:02,160 --> 03:51:03,480 WE WERE EATING LUNCH AND TRYING 6258 03:51:03,480 --> 03:51:08,080 TO KEEP UP WITH EVERYTHING. 6259 03:51:08,080 --> 03:51:09,600 REALLY APPRECIATE YOU STAYING 6260 03:51:09,600 --> 03:51:10,680 ENGAGE AND ASKING QUESTIONS. 6261 03:51:10,680 --> 03:51:13,520 EVERY WHO PRESENTED PREPARED 6262 03:51:13,520 --> 03:51:14,080 EXCELLENT PRESENTATIONS, IT 6263 03:51:14,080 --> 03:51:17,880 MEANS A LOT FOR US TO BE ENGAGED 6264 03:51:17,880 --> 03:51:20,520 AND CONTINUE A CONVERSATION WITH 6265 03:51:20,520 --> 03:51:21,920 THEM. 6266 03:51:21,920 --> 03:51:22,440 IS THERE ANYTHING ELSE. 6267 03:51:22,440 --> 03:51:24,680 >> I HAVE A QUESTION. 6268 03:51:24,680 --> 03:51:25,920 >> NO, NO. 6269 03:51:25,920 --> 03:51:27,040 >> SURE, VICKIE. 6270 03:51:27,040 --> 03:51:29,680 >> ANJEE, GIVEN THAT WE WERE 6271 03:51:29,680 --> 03:51:33,120 ABLE TO SEE DR. SHARPLESS TODAY, 6272 03:51:33,120 --> 03:51:37,280 IN HIS OFFICE, DO YOU HAVE ANY 6273 03:51:37,280 --> 03:51:40,680 SENSE THAT FOR LATER IN 2022 6274 03:51:40,680 --> 03:51:42,600 WE'RE GOING TO BE CONVENING IN A 6275 03:51:42,600 --> 03:51:44,640 WAY OTHER THAN BY ZOOM OR IS 6276 03:51:44,640 --> 03:51:49,040 THAT STILL A PENDING THING? 6277 03:51:49,040 --> 03:51:51,360 >> SURE, THANKS, VICKIE. 6278 03:51:51,360 --> 03:51:52,320 >> JUST FOR PLANNING. 6279 03:51:52,320 --> 03:51:54,240 >> I KNOW THAT WE WILL 6280 03:51:54,240 --> 03:51:55,640 CONTINUE -- THAT BOARDS LIKE 6281 03:51:55,640 --> 03:51:59,680 THIS WILL CONTINUE TO MEET 6282 03:51:59,680 --> 03:52:02,360 VIRTUALLY I THINK THROUGH JULY. 6283 03:52:02,360 --> 03:52:04,160 SO IT SEEMS LIKE OUR NEXT -- 6284 03:52:04,160 --> 03:52:05,920 SUMMER MEETING WILL BE VIRTUAL 6285 03:52:05,920 --> 03:52:11,920 AND PERHAPS WILL BE IN PERSON IN 6286 03:52:11,920 --> 03:52:13,040 THE FALL. 6287 03:52:13,040 --> 03:52:16,800 BUT THAT -- THE GUIDANCE WILL BE 6288 03:52:16,800 --> 03:52:20,280 UPDATED THIS SUMMER. 6289 03:52:20,280 --> 03:52:22,920 SO I DO KNOW WE'LL KEEP MEETING 6290 03:52:22,920 --> 03:52:27,320 VIRTUALLY UNTIL JULY. 6291 03:52:27,320 --> 03:52:29,520 6292 03:52:29,520 --> 03:52:30,200 >> THANK YOU. 6293 03:52:30,200 --> 03:52:31,520 WE'RE ALL ANXIOUS TO KNOW WHEN 6294 03:52:31,520 --> 03:52:36,120 WE'LL HAVE A IT IN PERSON BUT I 6295 03:52:36,120 --> 03:52:38,080 APPRECIATE EVERYONE STICKING IT 6296 03:52:38,080 --> 03:52:39,280 OUT ON ZOOM FOR AN EXTENDED 6297 03:52:39,280 --> 03:52:41,680 PERIOD OF TIME AND LOOK FORWARD 6298 03:52:41,680 --> 03:52:42,920 TO SEEING EVERYONE ON THE NEXT 6299 03:52:42,920 --> 03:52:44,680 CALL AND SEEING IF THERE ARE 6300 03:52:44,680 --> 03:52:46,320 PRESSING ISSUES, THOUGHTS, 6301 03:52:46,320 --> 03:52:47,200 CHALLENGES THAT WE SHOULD 6302 03:52:47,200 --> 03:52:49,840 TACKLE, PLEASE SEND THOSE OVER 6303 03:52:49,840 --> 03:52:51,920 TO MYSELF OR AMY, AND WE WILL 6304 03:52:51,920 --> 03:52:52,840 DEFINITELY INCLUDE THAT OR TRY 6305 03:52:52,840 --> 03:52:55,080 TO INCLUDE THAT ON THE NEXT 6306 03:52:55,080 --> 03:52:55,320 AGENDA. 6307 03:52:55,320 --> 03:52:58,440 THANK YOU SO MUCH. 6308 03:52:58,440 --> 03:53:04,520 6309 03:53:04,520 --> 03:53:05,040 6310 03:53:05,040 --> 03:53:06,760 >> THANK YOU FOR WALKING US 6311 03:53:06,760 --> 03:53:07,640 THROUGH TODAY. 6312 03:53:07,640 --> 03:53:16,520 I HAVE A LIST OF ITEMS, AS 6313 03:53:16,520 --> 03:53:17,880 ALWAYS WE'LL BE IN TOUCH BEFORE 6314 03:53:17,880 --> 03:53:19,560 WE MET THIS SUMMER. 6315 03:53:19,560 --> 03:53:21,120 THANK YOU FOR ALL YOU'RE DOING 6316 03:53:21,120 --> 03:53:22,920 ON BEHALF OF PATIENTS ACROSS THE 6317 03:53:22,920 --> 03:53:23,640 COUNTRY, IT REALLY DOES MATTER. 6318 03:53:23,640 --> 03:53:24,600 >> THANK YOU SO MUCH. 6319 03:53:24,600 --> 03:53:25,920 >> EVERYONE HAVE A GREAT DAY. 6320 03:53:25,920 --> 03:53:26,480 >> TAKE CARE. 6321 03:53:26,480 --> 00:00:00,000 >> THANK YOU SO MUCH.