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CAPTIONS BEGIN SHORTLY

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>> SO AT THIS POINT I'LL TURN

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THE MREETH OVER TO 42 BOARD

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CHAIR, BARBARA BREGMAN TO TAKE A

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QUICK ROLL CALL.

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>> WELCOME BACK, EVERYONE.

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IN TERMS OF ROLL CALL, DAWN

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>> HERE.

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>> BOB SANDBERG.

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FRANCISCO?

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LOUIS WHETTON.

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>> GOOD MORNING.

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>> I KNOW WADE IS HERE.

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KATHERINE ZAKOWSKI.

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>> HERE.

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>> SHERRY.

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>> HERE.

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>> PEPE.

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>> HERE, GOOD MORNING.

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>> MICHELLE.

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LAURA, GOOD MORNING.

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>> GOOD MORNING.

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>> STEVE?

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>> I'M HERE.

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>> THANKS, BOB.

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THANKS, STEVE.

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>> CHRIS.

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>> GOOD MORNING.

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>> STEVE KRAMER.

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>>  ERIC JONES.

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AND SARAH BLATTON.

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>> GOOD MORNING.

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>> THANKS, SO MUCH, EVERYONE FOR

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JOINING US TODAY.

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I AM DELIGHTED TO WELCOME

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DR. WADE SCHRADER.

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HE'S AN ORTHOPEDIC PEDIATRIC

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SURGEON OF THE CEREBRAL PALSY

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CENTER AND ON THE BOARD OF

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DIRECTORS, AMERICAN ACADEMY OF

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CEREBRAL PALSY AND REVIEWER AND

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EDITOR AND CONTRIBUTOR IN

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NUMEROUS JOURNALS AND BOOK

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CHAPTERS.

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DELIGHTED TO HAVE DR. SCHRADER

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SHARE HIS THOUGHTS ON

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TRAJECTORIES ON CEREBRAL PALSY

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AND WHAT DO NASA AND AACPDM HAVE

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IN COMMON.

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>> I HOPE EVERYONE CAN HEAR ME

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WELL.

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I WILL START SHARING MY SCREEN.

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>> IT'S MY GREAT HONOR AND THANK

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YOU RALPH FOR THE OPPORTUNITY

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AND I'VE THOROUGHLY ENJOYED

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BEING ON THE ADVISORY BOARD.

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WE'LL TALK ABOUT TRAJECTORIES ON

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CEREBRAL PALSY AND WHAT DOES

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NASA AND THE AACPDM HAVE IN

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COMMON.

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HOPEFULLY THERE'LL BE SOME FUN

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ALONG THE WAY WE CAN SEE.

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I KNOW A LOT OF US IN LIFE

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SCIENCES AND HEALTH CARE DON'T

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TALK ABOUT SPACE TRAVEL AND OUR

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SPACE INDUSTRY MUCH AND SO I

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THINK IT WILL BE FUN.

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RALPH AND I HAD FUN COMING UP

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WITH THAT TITLE.

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SO MY DISCLOSURES I'M THE

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CURRENT PRESIDENT OF AACPDM.

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IT'S BEEN THE HIGHLIGHT OF MY

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CAREER AND I'M THE FATHER OF TWO

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YOUNG ADULTS WITH CP.

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AND SO I THINK THIS TALK'S BEEN

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FUN TO PUT TOGETHER BECAUSE IT'S

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BEEN ABLE IT TALK ABOUT THE

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TRAJECTORY OF MY LIFE TO USE THE

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NASA TERMS AS WE'LL KEEP USING

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THROUGHOUT THE COURSE OF THIS

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TALK.

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AND HOW MY TRAJECTORY CHANGED

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WHEN I DECIDED TO GO TO MEDICAL

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SCHOOL AND THEN OF COURSE I

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CHANGED PROFOUNDLY WHEN OUR KIDS

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WERE BORN AND THE SUBSEQUENT

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DIAGNOSIS OF CP AND HOW IT LET

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TO MY CURRENT CAREER.

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TALKING ABOUT TRAJECTORIES AND

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WITH A LITTLE TALK ABOUT NASA

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FOR A FEW MINUTES.

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I GREW UP IN A SMALL TOWN IN

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MISSISSIPPI BUT LIKE A LOT OF US

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WHO ARE CHILD PRODUCTS OF THE

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LATE '60s, I LOVED NASA.

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I LOVED EVERYTHING ABOUT IT AND

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EXCITED TO HEAR ABOUT THE LATEST

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NEW NASA LAUNCHES.

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I WATCHED THE DEVELOPMENT OF THE

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SPACE SHUTTLE WITH A LOT OF KEEN

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INTEREST.

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SO I DECIDED TO GO INTO THAT

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CAREER AND GOT MY BACHELOR'S OF

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SCIENCE FROM MISSISSIPPI STATE.

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I WAS FORTUNATE.

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MY FIRST JOB WAS IN FLIGHT

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MECHANICS AT NASA'S SPACE CENTER

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IN HUNTSVILLE, ALABAMA.

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MARSHALL IS SITUATED AT THE RED

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STONE ARSENAL WHICH IS ARMY

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MISSILE AND SPACE COMMAND.

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THAT'S WHERE THE GERMAN

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ENGINEERS SETTLED AFTER WORLD

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WAR II WHO WERE INSTRUMENTAL IN

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THE ROLE OF THE DEVELOPMENT OF

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THE SPACE PROGRAM.

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THAT'S WHERE ALL THE VEHICLE

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ENGINEERING WAS DONE FOR ALL OF

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OUR EARLY ROCKETS, MERCURY,

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GEMINI AND A POPOLLO AND THE SAN

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5 ROCKET.

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IN THE DISTANCE IS WHERE THEY

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TESTED THE ROCKETED AND YOU

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COULD MEASURE AS AN EARTHQUAKE

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ALL AROUND ALABAMA WHEN THEY

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TESTED THAT.

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MY PRIMARY ROLE WAS TO DEVELOP

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THE GUIDANCE AND DESIGN THE

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TRAJECTORIES FOR THE NATIONAL

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LAUNCH SYSTEM AND WE'LL TALK

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ABOUT THE NLS IN A MINUTE.

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THERE'S A LOT OF LEGACY OF

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FOLLOWING IN THE FOOTSTEP

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THERE'S IN MARSHALL.

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THE REASON WE WERE HIRED AND

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THERE WAS A BOOM IN THE LATE

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'80s AND '90s IS THE SPACE

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SHUTTLE FLEET WAS IN DANGER OF

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BECOMING OBSOLETE.

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THERE WAS THE SPACE SHUTTLE

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INCIDENT LOOMING AND THERE WAS A

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CONTRAST ON WHAT WE NEEDED FOR

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THE COUNTRY AS A LAUNCH VEHICLE

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SYSTEM.

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DID WE THESE SOMETHING THAT

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COULD PUT A TON OF PAYLOAD IN

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ORBIT AND RELIABLE LIKE THE

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SATURN 5 ROCKET.

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IT HAD SO MUCH REDUNDANCY IT

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COULD LOSE IN ENGINES AND STILL

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DELIVER THE PAY LOAD OR WANTED

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SOMETHING SLEEK LIKE A REUSABLE

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SPACE PLAIN.

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THAT BECAME SUCH ATOUGH

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TECHNOLOGY TO MANAGE AND WAS

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LIKE A FINICKY RACE CAR WITH A

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NARROW WINDOW OF PERFORMANCE.

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THERE WERE LOTS OF DAYS IT

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COULDN'T LAUNCH BASED ON WEATHER

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AND IN FACT THAT'S THE MAIN

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REASON THE CHALLENGER ACCIDENT.

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IT LAUNCHED WHEN IT WAS TOO COLD

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BASED ON THE CERTAIN DESIGN

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PARAMETERS.

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IN ADDITION IT WAS A TOUGH

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ENGINEERING SOLUTION TO GET THE

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SPACE SHUTTLE READY TO LAUNCH IT

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TOOK A WHOLE ARMY OF PEOPLE FOR

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EVERY LAUNCH THAT ATE UP A BIG

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CHUNK OF THE NASA BUDGET EVERY

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YEAR.

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THEN IN THE EARLY '90s WE WERE

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TRYING TO BUILD THE SPACE

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STATION FORMALLY CALLED SPACE

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STATION FREEDOM AND THAT'S WHAT

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IT LOOKED LIKE.

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THERE WERE FINANCIAL CONSTRAINTS

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AND TRYING TO BUILD THE SPACE

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STATION THAT ULTIMATELY BECAME

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THE INTERNATIONAL SPACE STATION

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AND I'LL TALK ABOUT THE POLITICS

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OF THAT IN A MINUTE AND HOW I

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WAS IN THE MIDDLE OF IT AND A

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CAL -- COOL STORY.

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THE NLS WAS SET UP TO BE A

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REPLACEMENT FOR THE SPACE

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SHUTTLE AN WAS A NEXT GENERATION

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OF BLEND OF SHUTTLE TECHNOLOGY.

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YOU CAN SEE THE NLS AND THE

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SOLID ROCKET BOOSTERS OF THE

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SPACE SHUTTLE AND THE EXTERNAL

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FUEL TANK AS THE MAIN FUSELAGE.

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AS THE COMBINATION OF TECHNOLOGY

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AND PHILOSOPHY AND ENGINEERING.

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THAT'S WHAT I WORKED ON IN THE

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EARLY '90s AND NOW HAS COME TO

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FREW ALMOST 30 YEARS LATER WE

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NOW HAVE THE SLS THE SPACE

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LAUNCH SYSTEM AND THE ARTEMIS

200
00:11:11,504 --> 00:11:14,073
PROJECT IS BEING LAUNCHED IN

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00:11:14,140 --> 00:11:14,273
SPACE.

202
00:11:14,340 --> 00:11:15,941
YOU ARE CAN SEE IT LOOKS SIMILAR

203
00:11:16,008 --> 00:11:26,419
TO THE NLS IN THE 1990s.

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NASA IS LIKE MEDICAL PROGRAM AND

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YOU WHEN YOU DO Ph.D. TRAINING

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00:11:33,359 --> 00:11:35,561
YOU DIVERSIFY IN WHAT YOUR SKILL

207
00:11:35,628 --> 00:11:38,264
SET WAS AND I ENJOYED MY EARLY

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00:11:38,330 --> 00:11:43,269
TIME IN NASA IN ADDITION TO

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00:11:43,335 --> 00:11:46,839
OTHER THINGS AND LITERALLY WORK

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ON TRAJECTORIES FOR LUNAR AND

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MARS MISSION AND TRYING TO

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00:11:59,385 --> 00:12:02,321
MINIMIZE THE TIME HUMANS WERE IN

213
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SPACE AND TRANSIT TO MARS AND I

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WORKED ON EVERY NASA SPACE

215
00:12:07,359 --> 00:12:08,861
CENTER HAS ITS OWN OPERATION

216
00:12:08,928 --> 00:12:12,431
CENTER LIKE A MINI MISSION

217
00:12:12,498 --> 00:12:12,832
CONTROL.

218
00:12:12,898 --> 00:12:14,700
THE HUNTSVILLE ONE WAS THE

219
00:12:14,767 --> 00:12:15,701
OPERATION SUPPORT CENTER AND

220
00:12:15,768 --> 00:12:18,504
THAT'S A PICTURE OF IT THERE.

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00:12:18,571 --> 00:12:20,706
AND HUNTSVILLE AND MARSHALL WAS

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INVOLVED IN A LOT OF THE VEHICLE

223
00:12:22,141 --> 00:12:22,508
ENGINEERING.

224
00:12:22,575 --> 00:12:26,645
SO THE ENGINE WORK WAS STATED

225
00:12:26,712 --> 00:12:30,049
AND MARSHALL DESPITE SOME

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00:12:30,116 --> 00:12:31,217
ASTRONAUT TRAINING BEING MOVED

227
00:12:31,283 --> 00:12:32,318
TO HOUSTON.

228
00:12:32,384 --> 00:12:35,855
SO WHAT IT DOES IS IT HAS PEOPLE

229
00:12:35,921 --> 00:12:38,057
SITTING ON CONSOLE LIKE MISSION

230
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CONTROL WHERE THEY GET DATA FROM

231
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THE ENGINES AND I FORTUNATE TO

232
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WORK ON THAT AND SIT ON CONSOLE

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00:12:46,065 --> 00:12:48,534
FOR SDS45 THE SPACE SHUTTLE

234
00:12:48,601 --> 00:12:49,268
DISCOVERY WHICH SHOWS THE

235
00:12:49,335 --> 00:12:51,670
MISSION LAUNCHING ON THE RIGHT.

236
00:12:51,737 --> 00:12:52,805
THAT WAS A COOL THING FOR ME TO

237
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BE ABLE TO DO.

238
00:13:04,750 --> 00:13:09,488
I WANT TO TALK ABOUT THE

239
00:13:09,555 --> 00:13:13,159
MECHANICS AND THE ORBIT WE PUT

240
00:13:13,225 --> 00:13:15,294
SATELLITES IN AROUND THE EARTH

241
00:13:15,361 --> 00:13:17,963
HAS AN INCLINATION ANGLE,

242
00:13:18,030 --> 00:13:22,701
MEANING THE ANGLE WITH RESPECT

243
00:13:22,768 --> 00:13:25,371
TO THE EQUATOR HOPEFULLY YOU CAN

244
00:13:25,437 --> 00:13:29,642
SEA IS AND IT'S DICTATED BY THE

245
00:13:29,708 --> 00:13:31,343
LATITUDE OF THE LAUNCH SITE.

246
00:13:31,410 --> 00:13:32,645
MOST THE THINGS WE LAUNCH IN THE

247
00:13:32,711 --> 00:13:35,347
UNITED STATES GET LAUNCHED INTO

248
00:13:35,414 --> 00:13:38,918
AN ORBITAL INCLINATION

249
00:13:38,984 --> 00:13:40,853
RESPECTIVE TO THE EQUATOR.

250
00:13:40,920 --> 00:13:43,689
THAT'S THE LATITUDE OF CAPE

251
00:13:43,756 --> 00:13:44,056
CANAVERAL.

252
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IT'S THE MOST EFFICIENT WAY OF

253
00:13:46,225 --> 00:13:48,527
PUTTING INTO ORBIT.

254
00:13:48,594 --> 00:13:52,565
WE CAN PUT THINGS IN OTHER

255
00:13:52,631 --> 00:13:55,234
ORBITAL INCLINATIONS BUT IT

256
00:13:55,301 --> 00:13:56,702
TAKES A LOT OF ENERGY AND FUEL

257
00:13:56,769 --> 00:13:58,804
AND IN THE SPACE LANGUAGE THAT

258
00:13:58,871 --> 00:14:01,073
JUST MEANS IT'S ALSO PAY LOAD.

259
00:14:01,140 --> 00:14:04,176
SO AS I SAID THERE'S A BIT OF AN

260
00:14:04,243 --> 00:14:06,345
INTERSECTION BETWEEN POLITICS

261
00:14:06,412 --> 00:14:07,179
AND PHYSICS.

262
00:14:07,246 --> 00:14:09,215
THE END OF THE COLD WAR CHANGED

263
00:14:09,281 --> 00:14:11,150
NASA PROFOUNDLY.

264
00:14:11,217 --> 00:14:12,751
THERE WAS TALK THEN AND THERE

265
00:14:12,818 --> 00:14:14,587
WERE FINANCIAL CONSTRAINTS ABOUT

266
00:14:14,653 --> 00:14:15,721
THE SPACE STATION.

267
00:14:15,788 --> 00:14:19,291
THERE WAS THE DECISION TO

268
00:14:19,358 --> 00:14:20,159
INCLUDE RUSSIA INTO THE SPACE

269
00:14:20,226 --> 00:14:23,162
STATION AND WE CHANGED THE NAME

270
00:14:23,229 --> 00:14:23,929
TO THE INTERNATIONAL SPACE

271
00:14:23,996 --> 00:14:25,698
STATION AT THAT TIME.

272
00:14:25,764 --> 00:14:28,033
IT DID CHANGE A LITTLE BIT OF

273
00:14:28,100 --> 00:14:29,501
THE COMPONENTS BUT THE BIG THING

274
00:14:29,568 --> 00:14:31,670
IT CHANGED WAS WE AGREED TO

275
00:14:31,737 --> 00:14:35,908
CHANGE THE INCLINATION ANGLE TO

276
00:14:35,975 --> 00:14:36,475
51.6 DEGREES.

277
00:14:36,542 --> 00:14:41,747
THAT'S THE LATITUDE OF THE

278
00:14:41,814 --> 00:14:43,849
COSMODROME IN KAZAGSTAN WHERE

279
00:14:43,916 --> 00:14:45,284
THE RUSSIANS LAUNCH THEIR SPACE

280
00:14:45,351 --> 00:14:45,551
VEHICLES.

281
00:14:45,618 --> 00:14:48,387
THAT PUT A BIG CONSTRAINT ON OUR

282
00:14:48,454 --> 00:14:49,521
LAUNCH SYSTEMS.

283
00:14:49,588 --> 00:14:52,024
WE DIDN'T HAVE ANY OTHER LAUNCH

284
00:14:52,091 --> 00:14:53,659
VEHICLES TO LAUNCH TO THE SPACE

285
00:14:53,726 --> 00:14:54,827
STATION AT THE TIME.

286
00:14:54,893 --> 00:15:00,132
TO BUILD IT WE ENDED UP USING A

287
00:15:00,199 --> 00:15:01,000
LOT OF RUSSIAN TECHNOLOGY AND

288
00:15:01,066 --> 00:15:03,602
LAUNCH VEHICLES BUT HAD TO

289
00:15:03,669 --> 00:15:06,639
CHANGE THE GUIDANCE TO STEER

290
00:15:06,705 --> 00:15:06,839
THERE.

291
00:15:06,905 --> 00:15:09,942
THIS IS THE PLOT OF THE

292
00:15:10,009 --> 00:15:10,276
ACCELERATION.

293
00:15:10,342 --> 00:15:12,478
THE SPACE SHUTTLE WITH THE WINGS

294
00:15:12,544 --> 00:15:15,314
COULDN'T TAKE NEARLY THE LOADS

295
00:15:15,381 --> 00:15:18,717
THE SATURN 5 ROCKET COULD PUT

296
00:15:18,784 --> 00:15:18,884
ON.

297
00:15:18,951 --> 00:15:20,886
WE HAD TO STEER OVER THE

298
00:15:20,953 --> 00:15:24,256
INCLINATION UP TO THE 21.6

299
00:15:24,323 --> 00:15:24,490
DEGREES.

300
00:15:24,556 --> 00:15:26,091
AND DO THAT WITHOUT EXCEEDING

301
00:15:26,158 --> 00:15:28,027
THE LOAD LIMITS YOU CAN SEE AT

302
00:15:28,093 --> 00:15:30,229
THE END OF THIS YOU CAN SEE HOW

303
00:15:30,296 --> 00:15:31,930
THE LOADS FLATTEN OFF.

304
00:15:31,997 --> 00:15:33,799
WE HAD TO DO THAT TO MAKE SURE

305
00:15:33,866 --> 00:15:35,768
WE DIDN'T EXCEED THE LOAD LIMITS

306
00:15:35,834 --> 00:15:38,504
OF THE WINGS OF THE SHUTTLE AND

307
00:15:38,570 --> 00:15:39,938
SNAP THE WINGS OFF AS WELL AS

308
00:15:40,005 --> 00:15:42,207
MAKING SURE THE ASTRONAUTS

309
00:15:42,274 --> 00:15:43,575
DIDN'T BLACK OUT.

310
00:15:43,642 --> 00:15:45,444
I GOT TASKED TO MODIFY THE

311
00:15:45,511 --> 00:15:47,146
PACKAGE AND THAT WAS FUN.

312
00:15:47,212 --> 00:15:48,881
THE ONLY TIME I WORKED DIRECTLY

313
00:15:48,947 --> 00:15:50,516
ON THE SPACE SHUTTLE OTHER THAN

314
00:15:50,582 --> 00:15:52,718
THE LAUNCH ON SDS45 AND

315
00:15:52,785 --> 00:15:54,353
FORTUNATE TO WIN A NASA SPECIAL

316
00:15:54,420 --> 00:15:56,255
SERVICE AWARD FOR THAT WORK.

317
00:15:56,322 --> 00:16:00,225
SO AS I MENTIONED THE END OF THE

318
00:16:00,292 --> 00:16:03,462
COLD WAR TRANSFORMED NASA.

319
00:16:03,529 --> 00:16:04,963
THERE WERE DECREASING BUDGETS

320
00:16:05,030 --> 00:16:08,067
AND HAD TO MAKE DECISIONS TO

321
00:16:08,133 --> 00:16:09,368
CONTINUE TO BUILD THE

322
00:16:09,435 --> 00:16:10,202
INTERNATIONAL SPACE STATION OR

323
00:16:10,269 --> 00:16:13,038
BUILD THE SHUTTLE REPLACEMENT

324
00:16:13,105 --> 00:16:16,175
AND BUILD NLS.

325
00:16:16,241 --> 00:16:17,876
THAT WAS HARD DECISION AND WHAT

326
00:16:17,943 --> 00:16:21,914
YOU CAN ALMOST SEE COMING YOU

327
00:16:21,980 --> 00:16:23,315
COULD ALMOST SEE THIS BIT OF

328
00:16:23,382 --> 00:16:27,152
TIME AND IF I CAN USE THE WORD

329
00:16:27,219 --> 00:16:28,020
STAGNATION THE UNITED STATES

330
00:16:28,087 --> 00:16:29,555
DIDN'T HAVE A WAY TO LAUNCH

331
00:16:29,621 --> 00:16:32,091
VEHICLES OURSELVES INTO ORBIT.

332
00:16:32,157 --> 00:16:33,525
WE COULD LAUNCH SATELLITES BUT

333
00:16:33,592 --> 00:16:37,096
NOT HUMANS AND WE LAID ON

334
00:16:37,162 --> 00:16:39,198
RUSSIANS FOR THAT.

335
00:16:39,264 --> 00:16:42,534
I COULD SEE DOING FEASIBILITY

336
00:16:42,601 --> 00:16:45,637
STUD Y AND MY BRANCH IS WHAT

337
00:16:45,704 --> 00:16:47,606
THEY'VE DONE.

338
00:16:47,673 --> 00:16:50,142
YOU'VE SEEN THE PICTURES OF THE

339
00:16:50,209 --> 00:16:52,044
SLS HAS TAKEN 30 YEARS TO BUILD

340
00:16:52,111 --> 00:16:52,878
THE LAUNCH VEHICLE.

341
00:16:52,945 --> 00:16:55,347
I'M GLAD THEY'RE ABLE TO NOW AND

342
00:16:55,414 --> 00:16:57,716
I'VE KEPT IN TOUCH AND THEY'RE

343
00:16:57,783 --> 00:16:59,118
EXCITED ABOUT THE ARTEMIS

344
00:16:59,184 --> 00:16:59,685
PROJECTS.

345
00:16:59,752 --> 00:17:03,255
PERSONALLY I WAS AT A CROSSROADS

346
00:17:03,322 --> 00:17:05,824
AND SEEMED I HAD PATHWAYS TO A

347
00:17:05,891 --> 00:17:08,093
CAREER CHANGE TO CONSIDER

348
00:17:08,160 --> 00:17:09,795
MEDICINE AND PERHAPS CALLING ME.

349
00:17:09,862 --> 00:17:14,032
ABOUT THAT TIME MY FATHER IN LAW

350
00:17:14,099 --> 00:17:17,302
DIED OF CANCER AND MY WIFE AND A

351
00:17:17,369 --> 00:17:18,771
WERE AROUND COMPLEX HEALTH CARE

352
00:17:18,837 --> 00:17:21,306
A GOOD BIT AND SEEMED EVERYWHERE

353
00:17:21,373 --> 00:17:23,275
WE WERE SEEING FRIENDS OR PEOPLE

354
00:17:23,342 --> 00:17:31,283
WE WORKED WITH CHILDREN WITH CP

355
00:17:31,350 --> 00:17:34,953
OR SPINAL BIFIDA AND STARTED

356
00:17:35,020 --> 00:17:37,256
PLANTING THE SEEDS OF WHAT THE

357
00:17:37,322 --> 00:17:38,657
TRAJECTORY OF MY LIFE WAS.

358
00:17:38,724 --> 00:17:42,361
I WENT TO MEDICAL SCHOOL AND MY

359
00:17:42,428 --> 00:17:44,096
WIFE WENT TO GRAD SCHOOL AND

360
00:17:44,163 --> 00:17:45,597
THOUGHT WE'D START A FAMILY.

361
00:17:45,664 --> 00:17:48,200
IN MY SECOND YEAR OF MEDICAL

362
00:17:48,267 --> 00:17:51,603
SCHOOL WE FOUND OUT WE WERE

363
00:17:51,670 --> 00:17:52,871
EXPECTED TRIPLETS.

364
00:17:52,938 --> 00:17:55,474
MULTIPLES WERE ON MY WIFE'S

365
00:17:55,541 --> 00:17:59,445
FAMILY AND I WASN'T A SURPRISE

366
00:17:59,511 --> 00:18:02,247
TO HAVE TWINS BUT TRIPLETS WAS A

367
00:18:02,314 --> 00:18:04,983
SURPRISE AND HAD COMPLICATIONS.

368
00:18:05,050 --> 00:18:07,686
SHE WAS PUT ON BED REST AND

369
00:18:07,753 --> 00:18:08,554
ADMITTED TO HOSPITAL 21 WEEKS

370
00:18:08,620 --> 00:18:12,624
AND THE TRIPLETS WERE BORN AT 28

371
00:18:12,691 --> 00:18:14,493
PLUS FOUR AFTER SOME GOOD

372
00:18:14,560 --> 00:18:16,862
HEMORRHAGING AND COMPLICATIONS.

373
00:18:16,929 --> 00:18:21,366
HERE THEY ARE IN THE NICU AND

374
00:18:21,433 --> 00:18:24,036
BENJAMIN AT TWO POUNDS AND 15

375
00:18:24,102 --> 00:18:29,608
AND MASON AT TWO POUNDS FIVE

376
00:18:29,675 --> 00:18:32,311
OUNCES AND CLAIR AT TWO POUNDS

377
00:18:32,377 --> 00:18:34,279
AND NINE OUNCES AND THERE THEY

378
00:18:34,346 --> 00:18:36,782
ARE IN A SINGLE BABY SWING TO

379
00:18:36,849 --> 00:18:38,517
POSE FOR THE PICTURE.

380
00:18:38,584 --> 00:18:43,789
IF YOU'VE BEEN IN AN NICU IT'S A

381
00:18:43,856 --> 00:18:45,924
PLACE OF OVERWHELMING

382
00:18:45,991 --> 00:18:46,458
TECHNOLOGY.

383
00:18:46,525 --> 00:18:50,295
WE DO A JOB OF SAVING PRETERM

384
00:18:50,362 --> 00:18:53,198
BABY THESE DAYS BUT THERE'S

385
00:18:53,265 --> 00:18:58,003
CONSTANT DANGER AND CODES AND

386
00:18:58,070 --> 00:18:59,304
DEATH AND IT WAS QUITE

387
00:18:59,371 --> 00:19:01,106
TERRIFYING FOR US AND THAT WAS

388
00:19:01,173 --> 00:19:05,978
EVEN AFTER TWO YEARS OF ME BEING

389
00:19:06,044 --> 00:19:06,812
AROUND MEDICAL SCHOOL.

390
00:19:06,879 --> 00:19:09,815
THE KIDS DID WELL THROUGH THE

391
00:19:09,882 --> 00:19:13,418
NICU BUT ALL THREE OF THEIR HEAD

392
00:19:13,485 --> 00:19:15,254
ULT

393
00:19:15,320 --> 00:19:17,523
ULTRASOUNDS WERE NEGATIVE AND

394
00:19:17,589 --> 00:19:20,225
MASON WAS TOLD MAYBE SHE HAD A

395
00:19:20,292 --> 00:19:24,062
SMALL BLEED AND LOOKED FOR

396
00:19:24,129 --> 00:19:28,467
INTRACRANIAL HEMORRHAGES THAT

397
00:19:28,534 --> 00:19:30,302
WERE A SIGN OF CEREBRAL PALSY

398
00:19:30,369 --> 00:19:32,004
AND WERE TOLD ALL SHOULD BE FINE

399
00:19:32,070 --> 00:19:34,706
WITHOUT SIGNIFICANT

400
00:19:34,773 --> 00:19:35,040
DISABILITIES.

401
00:19:35,107 --> 00:19:37,676
THEY WERE SENT HOME DURING MY

402
00:19:37,743 --> 00:19:40,245
THIRD YEAR OF MEDICAL SCHOOL.

403
00:19:40,312 --> 00:19:45,751
WE WERE EXHAUSTED AND JUGGLING

404
00:19:45,817 --> 00:19:49,254
THINGS BUT IT SOMED WE HAD

405
00:19:49,321 --> 00:19:52,324
DODGED A MAJOR DISASTER IN OUR

406
00:19:52,391 --> 00:19:52,758
FAMILY'S LIFE.

407
00:19:52,824 --> 00:19:54,226
I WAS AT THE UNIVERSITY OF

408
00:19:54,293 --> 00:19:57,329
CHICAGO AND WE WERE ONE OF THE

409
00:19:57,396 --> 00:20:00,032
MEMBERS OF THE TEMPS STUDY

410
00:20:00,098 --> 00:20:00,566
GROUP.

411
00:20:00,632 --> 00:20:04,736
WE KNOW THERE'S STANDARDIZED

412
00:20:04,803 --> 00:20:06,405
DEVELOPMENT TRAJECTORIES OF FULL

413
00:20:06,471 --> 00:20:09,575
TERM PREGNANCIES BUT WE ALWAYS

414
00:20:09,641 --> 00:20:11,243
ASSUME THOSE DEVELOPMENT

415
00:20:11,310 --> 00:20:14,713
PROFILES GOT SHIFTED BY THEIR

416
00:20:14,780 --> 00:20:18,951
CORRECTED AGES FOR KIDS WITH

417
00:20:19,017 --> 00:20:21,954
PREMATURITY AND THE TIP STUDY

418
00:20:22,020 --> 00:20:23,455
WAS A MULTI-CENTER STUDY AND THE

419
00:20:23,522 --> 00:20:29,895
KIDS GOT ON THE COVER OF THE

420
00:20:29,962 --> 00:20:31,430
PHYSICAL THERAPY TEXTBOOK.

421
00:20:31,496 --> 00:20:33,265
WE WERE CLOSELY MONITORED.

422
00:20:33,332 --> 00:20:34,866
WE HAD THERAPISTS IN THE HOUSE

423
00:20:34,933 --> 00:20:36,969
ALMOST EVERY WEEK.

424
00:20:37,035 --> 00:20:39,004
THEY WERE BORN PREMATURE AND

425
00:20:39,071 --> 00:20:45,978
PART OF NICU FOLLOW-UP AND EARLY

426
00:20:46,044 --> 00:20:51,683
INTERVENTION AND SO HAD A CLOSE

427
00:20:51,750 --> 00:20:55,487
EYES ON THE BOYS AND HAD OUR OWN

428
00:20:55,554 --> 00:20:58,056
DEVELOPMENT WORKSHOP WHERE OUR

429
00:20:58,123 --> 00:20:59,224
DAUGHTER WAS DOING INCREDIBLY

430
00:20:59,291 --> 00:21:02,294
WELL AND MEETING THE MILESTONES

431
00:21:02,361 --> 00:21:05,464
AND OUR SONS HAD NOTICEABLE

432
00:21:05,530 --> 00:21:06,698
DEVELOPMENT DELAYS.

433
00:21:06,765 --> 00:21:10,569
I WAS NOW A THIRD YEAR MEDICAL

434
00:21:10,636 --> 00:21:12,838
STUDENT GOING IN MY FOURTH YEAR.

435
00:21:12,904 --> 00:21:15,941
I WAS KEEN TO LEARN AS MUCH AS I

436
00:21:16,008 --> 00:21:18,377
COULD ABOUT PREMATURITY AND

437
00:21:18,443 --> 00:21:19,811
DEVELOPMENT DELAYS.

438
00:21:19,878 --> 00:21:21,513
WE KIND OF KNEW THE DIAGNOSIS

439
00:21:21,580 --> 00:21:23,782
WAS COME CANNING BUT IT DIDN'T

440
00:21:23,849 --> 00:21:25,484
CHANGE THE SHOCK OF WHAT THAT

441
00:21:25,550 --> 00:21:25,784
WAS.

442
00:21:25,851 --> 00:21:27,352
THERE'S THE THREE OF THEM

443
00:21:27,419 --> 00:21:30,155
TOGETHER AND THERE'S BENJAMIN AT

444
00:21:30,222 --> 00:21:31,323
AGE 1.

445
00:21:31,390 --> 00:21:33,492
YOU CAN SEE THAT WAS THE FIRST

446
00:21:33,558 --> 00:21:37,696
SURGERY WE HAD TO GO THROUGH AND

447
00:21:37,763 --> 00:21:38,330
COMMON COMORBIDITY IN CHILDREN

448
00:21:38,397 --> 00:21:40,399
WIN CEREBRAL PALSY.

449
00:21:40,465 --> 00:21:42,367
-- WITH CEREBRAL PALSY.

450
00:21:42,434 --> 00:21:49,975
THERE HE IS AFTER THE STRBISMUS

451
00:21:50,042 --> 00:21:52,010
SURGERY AND HAD THREE OR FOUR

452
00:21:52,077 --> 00:21:53,979
MORE SURGERIES WHICH IS NOT

453
00:21:54,046 --> 00:21:54,246
UNCOMMON.

454
00:21:54,312 --> 00:21:57,349
WE WERE REFERRED TO A

455
00:21:57,416 --> 00:22:00,218
PEDIATRICIAN AND BOTH BOYS WERE

456
00:22:00,285 --> 00:22:00,886
DIAGNOSED WITH CEREBRAL PALSY

457
00:22:00,952 --> 00:22:02,054
AND WHAT IS BRANDED INTO MY

458
00:22:02,120 --> 00:22:04,056
BRAIN IS NOT THE TIMING OF THE

459
00:22:04,122 --> 00:22:06,324
DIAGNOSIS OR ANYTHING, IT WAS

460
00:22:06,391 --> 00:22:09,528
HOW THE DEVELOPMENT PEDIATRICIAN

461
00:22:09,594 --> 00:22:10,696
GAVE US THE DIAGNOSIS.

462
00:22:10,762 --> 00:22:14,399
IN A VERY HURRIED CLINIC, REALLY

463
00:22:14,466 --> 00:22:15,834
NOT HAVING A LOT OF TIME FOR US,

464
00:22:15,901 --> 00:22:20,505
NOT REALLY LOOKING AT US AND

465
00:22:20,572 --> 00:22:22,107
BLURTED OUT OF COURSE HE HAS CP

466
00:22:22,174 --> 00:22:25,377
WHAT DID YOU EXPECT ME TO SAY.

467
00:22:25,444 --> 00:22:27,946
THAT WAS A FORMATIVE DAY IN MY

468
00:22:28,013 --> 00:22:30,916
LIFE AND CAREER AS A PHYSICIAN.

469
00:22:30,982 --> 00:22:33,185
I REALIZED EARLY THEN AND THAT

470
00:22:33,251 --> 00:22:36,188
WAS OUR FIRST FORMAL DAY OF

471
00:22:36,254 --> 00:22:37,189
BEING PARENTS OF CHILDREN WITH

472
00:22:37,255 --> 00:22:39,157
DISABILITIES BUT KNEW THE WAY WE

473
00:22:39,224 --> 00:22:40,892
APPROACH THE FAMILIES NEEDED TO

474
00:22:40,959 --> 00:22:41,560
GET BETTER.

475
00:22:41,626 --> 00:22:44,429
I DIDN'T KNOW EXACTLY HOW I WAS

476
00:22:44,496 --> 00:22:48,033
GOING TO GO ABOUT DOING THAT TO

477
00:22:48,100 --> 00:22:49,968
MAKE A DIFFERENCE.

478
00:22:50,035 --> 00:22:53,071
I CAN REMEMBER AND HEAR HIS

479
00:22:53,138 --> 00:22:53,705
VOICE LIKE IT HAPPENED

480
00:22:53,772 --> 00:22:53,972
YESTERDAY.

481
00:22:54,039 --> 00:22:56,975
I WENT ON TO DO MY ORTHOPEDIC

482
00:22:57,042 --> 00:22:59,077
SURGICAL RESIDENCY AT THE MAYO

483
00:22:59,144 --> 00:23:01,213
CLINIC AND THOUGHT I'D DO JOINT

484
00:23:01,279 --> 00:23:01,613
REPLACEMENTS.

485
00:23:01,680 --> 00:23:04,649
I WAS AN ENGINEER SO IT SEEMED

486
00:23:04,716 --> 00:23:06,017
KIND OF RIGHT.

487
00:23:06,084 --> 00:23:11,056
DURING MY SECOND YEAR OF RES

488
00:23:11,123 --> 00:23:12,290
RESIDENCY WE TOOK CARE OF KIDS

489
00:23:12,357 --> 00:23:14,426
WITH CP.

490
00:23:14,493 --> 00:23:17,295
I LOVED IT AND LOVED DEALING

491
00:23:17,362 --> 00:23:18,296
WITH THE CHILDREN AND PARENTS

492
00:23:18,363 --> 00:23:20,065
AND FOUND MYSELF AS A RESOURCE

493
00:23:20,132 --> 00:23:20,966
FOR THEM.

494
00:23:21,032 --> 00:23:22,834
I FOUND A COMMUNITY I COULD

495
00:23:22,901 --> 00:23:26,538
SHARE WITH AND ASK ME QUESTIONS

496
00:23:26,605 --> 00:23:29,341
THAT THEY COULDN'T ASK FROM

497
00:23:29,407 --> 00:23:29,775
OTHER ATTENDINGS.

498
00:23:29,841 --> 00:23:31,910
AND I FELT LIKE THIS WAS MY NEW

499
00:23:31,977 --> 00:23:34,646
PURPOSE IN LIFE TO HELP OTHER

500
00:23:34,713 --> 00:23:35,747
FAMILIES LIKE MINE.

501
00:23:35,814 --> 00:23:40,652
SO I'M GOING TO SHIFT GEARS A

502
00:23:40,719 --> 00:23:43,021
LITTLE BIT TO TALK HOW MY

503
00:23:43,088 --> 00:23:47,292
TRAJECTORY AND CAREER

504
00:23:47,359 --> 00:23:49,694
INTERSECTED ONE DUPONT OR

505
00:23:49,761 --> 00:23:50,595
NEMOURS AND TALK ABOUT THE

506
00:23:50,662 --> 00:23:52,964
RESEARCH WE'RE DOING.

507
00:23:53,031 --> 00:23:55,367
WE HAVE A WIDE MENU OF DIFFERENT

508
00:23:55,433 --> 00:23:57,269
TYPES OF RESEARCH ENDEAVORS

509
00:23:57,335 --> 00:23:59,538
WE'RE DOING HERE AT NEMOURS AND

510
00:23:59,604 --> 00:24:01,940
I'D LIKE TO SHOWCASE THAT

511
00:24:02,007 --> 00:24:03,909
BRIEFLY AND QUICKLY.

512
00:24:03,975 --> 00:24:05,944
THEN I'LL WRAP UP ABOUT WHAT I

513
00:24:06,011 --> 00:24:09,281
THINK IS PROBABLY I THINK ONE OF

514
00:24:09,347 --> 00:24:11,183
THE MOST FUNDAMENTAL POTENTIAL

515
00:24:11,249 --> 00:24:12,751
CONTRIBUTIONS I COULD HAVE IN MY

516
00:24:12,818 --> 00:24:14,986
CAREER AS I REFLECT ON BEING A

517
00:24:15,053 --> 00:24:17,289
PARENT OF A CHILD WITH CP AND

518
00:24:17,355 --> 00:24:20,025
TALKING ABOUT THE PSYCHO-SOCIAL

519
00:24:20,091 --> 00:24:22,394
MODEL OF CEREBRAL PALSY.

520
00:24:22,460 --> 00:24:27,833
SO DUPONT WAS STARTED IN

521
00:24:27,899 --> 00:24:31,069
WILMINGTON DELAWARE BY ALFRED

522
00:24:31,136 --> 00:24:32,037
DUPONT.

523
00:24:32,103 --> 00:24:34,239
THEY SETTLED IN THE DELAWARE

524
00:24:34,306 --> 00:24:37,642
VALLEY AND WERE ORIGINALLY GUN

525
00:24:37,709 --> 00:24:40,278
POWDER MAKERS AND WENT ON TO

526
00:24:40,345 --> 00:24:41,880
MAKE THE DUPONT CHEMICAL

527
00:24:41,947 --> 00:24:42,180
COMPANY.

528
00:24:42,247 --> 00:24:43,315
THEY DID WELL.

529
00:24:43,381 --> 00:24:46,318
NEMOURS IS THE NAME OF THEIR

530
00:24:46,384 --> 00:24:49,988
FAMILY ESTATE IN FRANCE.

531
00:24:50,055 --> 00:24:52,290
THAT'S WHY THE NEMOURS NAME IS

532
00:24:52,357 --> 00:24:54,960
ATTACHED AND THE HOSPITAL IS

533
00:24:55,026 --> 00:24:55,827
BUILT ON THE GROUNDS.

534
00:24:55,894 --> 00:24:57,696
IF YOU EVER SEE PICTURES OF THE

535
00:24:57,762 --> 00:25:00,365
GROUNDS LIKE I HAVE ON THE RIGHT

536
00:25:00,432 --> 00:25:05,904
HAND CORNER IT'S PATTERNED AFTER

537
00:25:05,971 --> 00:25:11,343
VERSAILLES WITH THE WAVES OF

538
00:25:11,409 --> 00:25:11,610
FOUNTAINS.

539
00:25:11,676 --> 00:25:14,312
THAT'S OUR NEW TOWER SO PATIENTS

540
00:25:14,379 --> 00:25:15,780
CAN TAKE TOURS OF THE GROUNDS

541
00:25:15,847 --> 00:25:18,617
AND LOOK OUT TO THE GROUNDS AND

542
00:25:18,683 --> 00:25:26,992
HAVE A BIT OF A CONVALESCENCE

543
00:25:27,058 --> 00:25:29,828
THERE AND ALFRED DUPONT FELT

544
00:25:29,895 --> 00:25:31,663
IT'S EVERY PERSON'S DUTY IN LIFE

545
00:25:31,730 --> 00:25:35,066
TO REDUCE HUMAN SUFFERING AND

546
00:25:35,133 --> 00:25:37,002
STARTED THIS INSTITUTE WHICH WAS

547
00:25:45,810 --> 00:25:51,416
AN ORTHOPEDIC PEDIATRIC HOSPITAL

548
00:25:51,483 --> 00:25:53,318
AND BECAME A CANCER CENTER AND

549
00:25:53,385 --> 00:25:57,822
IT'S A WORLD LEADER IN

550
00:25:57,889 --> 00:25:59,824
PEDIATRICS AND FREEMAN MILLER IS

551
00:25:59,891 --> 00:26:02,494
THERE WITH A PICTURE STARTED THE

552
00:26:02,560 --> 00:26:04,095
CP PROGRAM WHICH WAS ALWAYS

553
00:26:04,162 --> 00:26:06,398
DESIGN TO BE MULTI-DISCIPLINARY.

554
00:26:06,464 --> 00:26:09,768
HE'S THE AUTHOR OF THE TEXTBOOKS

555
00:26:09,834 --> 00:26:12,337
INCLUDING THE TEXTBOOK FOR

556
00:26:12,404 --> 00:26:13,171
CAREGIVERS.

557
00:26:13,238 --> 00:26:16,675
HE'S CONSIDERED THE GRANDFATHER

558
00:26:16,741 --> 00:26:18,610
OF AMERICAN CEREBRAL PALSY

559
00:26:18,677 --> 00:26:22,314
SURGERY AND SEES OVER 2,000

560
00:26:22,380 --> 00:26:25,884
CHILDREN WITH CP EVERY YEAR AND

561
00:26:25,951 --> 00:26:27,719
DOES SURGERY FROM CHILDREN

562
00:26:27,786 --> 00:26:29,387
AROUND THE COUNTRY AND THE WORLD

563
00:26:29,454 --> 00:26:30,989
AND WHEN HE WAS READY TO RETIRE

564
00:26:31,056 --> 00:26:33,091
HE ASKED ME TO TAKE OVER FOR HIM

565
00:26:33,158 --> 00:26:38,196
AS THE CHAIR OF CEREBRAL PALSY.

566
00:26:38,263 --> 00:26:40,532
THAT'S WHEN MY TRAJECTORY WOUND

567
00:26:40,598 --> 00:26:41,900
UP GOING TO DELAWARE.

568
00:26:41,967 --> 00:26:44,069
A BIG PART OF OUR LEGACY AND

569
00:26:44,135 --> 00:26:49,774
CARE OUR GATE LABORATORY AND

570
00:26:49,841 --> 00:26:51,176
FOUNDING PART OF THE COMMISSION

571
00:26:51,242 --> 00:26:52,911
FOR MOTION LABORATORY

572
00:26:52,978 --> 00:27:03,521
ACCREDITATION AND KINEMATICS AND

573
00:27:04,656 --> 00:27:07,492
WE DO MARKER MOTION CAPTURE.

574
00:27:07,559 --> 00:27:09,094
THAT'S THE WAVE OF THE FUTURE.

575
00:27:09,160 --> 00:27:11,496
THERE ON THE LEFT HAND YOU SEE A

576
00:27:11,563 --> 00:27:14,599
CHILD MARKERED UP AND WE USUALLY

577
00:27:14,666 --> 00:27:16,201
LET THEM DANCE AROUND AND DO FUN

578
00:27:16,267 --> 00:27:18,470
THINGS BUT ON THE RIGHT WE'RE

579
00:27:18,536 --> 00:27:21,906
NOW TRYING TO VALIDATE A MARKER

580
00:27:21,973 --> 00:27:23,742
ALSO MOTION CAPTURE SYSTEM WHICH

581
00:27:23,808 --> 00:27:26,444
WILL BE REVOLUTIONARY FOR THE

582
00:27:26,511 --> 00:27:26,845
FUTURE.

583
00:27:26,911 --> 00:27:28,613
WE'RE PROUD TO BE PART OF THE

584
00:27:28,680 --> 00:27:33,985
FOUNDING MEMBER OF THE CPRN AND

585
00:27:34,052 --> 00:27:36,988
LEADERS IN GCMAS AND FUND FROM

586
00:27:37,055 --> 00:27:38,123
ALL THOSE ORGANIZATIONS AND

587
00:27:38,189 --> 00:27:41,393
FORTUNATE TO HAVE SOME FUNDING

588
00:27:41,459 --> 00:27:46,765
FROM NIH AND PARTNER WITH GUL ET

589
00:27:46,831 --> 00:27:48,900
AND TALKING ABOUT SOME OF THE

590
00:27:48,967 --> 00:27:53,304
RESEARCH WE'RE DOING, AND WHAT

591
00:27:53,371 --> 00:27:54,039
IS PULMONARY FUNCTION.

592
00:27:54,105 --> 00:27:55,607
MANY CHILDREN WITH DISABILITIES

593
00:27:55,673 --> 00:27:59,010
ARE UNABLE TO COMPLETE STANDARD

594
00:27:59,077 --> 00:28:00,545
PULMONARY FUNCTION TEST.

595
00:28:00,612 --> 00:28:06,484
SOME HAVE CO-EXISTING

596
00:28:06,551 --> 00:28:09,120
INTELLECTUAL DISABILITIES AND

597
00:28:09,187 --> 00:28:19,731
KIDS WITH DUCHENNES AND WE KNOW

598
00:28:27,172 --> 00:28:32,577
SCOLIOSIS TREATMENT MAY LEAD TO

599
00:28:32,644 --> 00:28:34,012
INCREASED LONGEVITY BUT IT'S

600
00:28:34,079 --> 00:28:34,946
CONTROVERSIAL BUT WE WANTED TO

601
00:28:35,013 --> 00:28:39,417
COME UP WITH A WAY TO TRY TO

602
00:28:39,484 --> 00:28:41,286
BETTER UNDERSTAND PULMONARY

603
00:28:41,352 --> 00:28:46,658
FUNCTION AND CAME UP ONE THIS

604
00:28:46,724 --> 00:28:50,895
DEVICE A PATENT FROM ONE OF OUR

605
00:28:50,962 --> 00:28:51,362
ENGINEERS.

606
00:28:51,429 --> 00:28:53,765
IT MEASURES THE BREATHING BY

607
00:28:53,832 --> 00:28:55,633
CORRELATING HOW MUCH YOUR

608
00:28:55,700 --> 00:28:57,469
THORACIC BREATHING IS

609
00:28:57,535 --> 00:28:58,603
CONTRIBUTING AND HOW MUCH

610
00:28:58,670 --> 00:29:00,872
ABDOMINAL BREATHING YOU DO.

611
00:29:00,939 --> 00:29:03,007
FOR NORMAL HEALTHY FOLKS IT

612
00:29:03,074 --> 00:29:09,714
SHOULD BE IN THIS ANGLE AND OUT

613
00:29:09,781 --> 00:29:12,650
OF PHASE USUALLY CORRELATES WITH

614
00:29:12,717 --> 00:29:14,819
PULMONARY PATHOLOGY AND DID A

615
00:29:14,886 --> 00:29:16,221
PILOT STUDY WITH KIDS WITH

616
00:29:16,287 --> 00:29:21,659
CEREBRAL PALSY AND THE HEALTHY

617
00:29:21,726 --> 00:29:25,063
KIDS HAD NORMAL LUNG FUNCTION

618
00:29:25,130 --> 00:29:27,232
AND HAD NORMAL WORK BREATHING

619
00:29:27,298 --> 00:29:30,768
AND PHASE ANGLES BUT SAW A IN

620
00:29:30,835 --> 00:29:33,438
OUR KIDS WITH CEREBRAL PALSY.

621
00:29:33,505 --> 00:29:34,072
WE WERE FORTUNATE TO PROCEED

622
00:29:34,139 --> 00:29:38,409
WITH THE STUDY ON THE

623
00:29:38,476 --> 00:29:40,945
NON-INVASIVE MEASURE OF CHILDREN

624
00:29:41,012 --> 00:29:42,714
WITH CEREBRAL PALSY AND RALPH

625
00:29:42,780 --> 00:29:44,983
HASN'T EVEN THE DATA YET WE ARE

626
00:29:45,049 --> 00:29:46,084
FINDING IN THE CEREBRAL PALSY

627
00:29:46,151 --> 00:29:49,087
KIDS WHAT WE FOUND WITH MUSCULAR

628
00:29:49,154 --> 00:29:52,891
DYSTROPHY KIDS IT'S ABLE TO

629
00:29:52,957 --> 00:29:53,224
DISCRIMINATE.

630
00:29:53,291 --> 00:29:55,793
NOW WE'LL TRY TO CONTINUE TO

631
00:29:55,860 --> 00:29:59,564
CORRELATE THAT WITH GMFCS AND

632
00:29:59,631 --> 00:30:01,566
SEE IF THEY CORRELATE WITH THE

633
00:30:01,633 --> 00:30:07,005
MEASURES OF PULMONARY FUNCTION

634
00:30:07,071 --> 00:30:09,541
AND SCOLIOSIS.

635
00:30:09,607 --> 00:30:10,842
IT'S DONE IN THE CLINIC AND

636
00:30:10,909 --> 00:30:12,810
TALKS ABOUT FIVE MINUTES.

637
00:30:12,877 --> 00:30:14,245
THE FEEDBACK FROM THE FAMILIES

638
00:30:14,312 --> 00:30:15,246
IS THE TESTING IS EASILY

639
00:30:15,313 --> 00:30:17,081
TOLERATED.

640
00:30:17,148 --> 00:30:18,116
WE'RE CONTINUING ON RECRUITING

641
00:30:18,183 --> 00:30:22,353
FOR THAT RIGHT NOW.

642
00:30:22,420 --> 00:30:24,189
WE ALSO DO TRANSLATIONAL SCIENCE

643
00:30:24,255 --> 00:30:26,891
WORK IN MUSCLE AND THIS IS LED

644
00:30:26,958 --> 00:30:30,028
BY A PARTNER JASON HOWARD.

645
00:30:30,094 --> 00:30:32,163
MUSCLE AND CP IS NOT SO NORMAL.

646
00:30:32,230 --> 00:30:34,766
WE USED TO THINK MUSCLE WAS

647
00:30:34,832 --> 00:30:37,702
PROBABLY NORMAL BECAUSE IT'S A

648
00:30:37,769 --> 00:30:39,270
NEUROLOGICAL CONDITION.

649
00:30:39,337 --> 00:30:42,440
AND WORK FROM PEOPLE INCLUDING

650
00:30:42,507 --> 00:30:43,841
RICK LIEBER IN CHICAGO WE KNOW

651
00:30:43,908 --> 00:30:46,377
IT'S NOT NORMAL.

652
00:30:46,444 --> 00:30:51,115
WE KNOW OUR JOINTS ARE

653
00:30:51,182 --> 00:30:51,416
CONTRACTED.

654
00:30:51,482 --> 00:30:56,821
WE HAVE KNEE FLEX CONTRACTS BUT

655
00:30:56,888 --> 00:30:59,958
THERE'S INCREASED TISSUE WITH

656
00:31:00,024 --> 00:31:01,659
DECREASED NUMBER OF SATELLITE

657
00:31:01,726 --> 00:31:04,195
CELLS WITH DYSFUNCTION AND

658
00:31:04,262 --> 00:31:06,464
EPIGENTIC ABNORMALITIES AND NOW

659
00:31:06,531 --> 00:31:09,033
THE CONNECTIVE TISSUE IS

660
00:31:09,100 --> 00:31:11,636
COLLAGEN AND YOU SEE THERE'S

661
00:31:11,703 --> 00:31:14,339
INCREASING AMOUNTS OF CROSS

662
00:31:14,405 --> 00:31:16,307
CONNECTIONS OF CABLES BETWEEN

663
00:31:16,374 --> 00:31:20,812
THE TYPE 1 COLLAGEN AND MUSCLE

664
00:31:20,878 --> 00:31:21,412
STIFFNESS INCREASES WITH

665
00:31:21,479 --> 00:31:22,380
COLLAGEN CONTENT.

666
00:31:22,447 --> 00:31:23,982
WE CAME UP WITH THE IDEA MAYBE

667
00:31:24,048 --> 00:31:27,986
THAT COULD BE A TARGET FOR

668
00:31:28,052 --> 00:31:31,623
TREATMENT AND SO WE DID THIS

669
00:31:31,689 --> 00:31:33,925
PILOT STUDY OF COLLAGENASE YOU

670
00:31:33,992 --> 00:31:38,896
CAN SEE US HARVESTING MUSCLE

671
00:31:38,963 --> 00:31:42,033
FIBERS DOING ADD ADDUCTOR

672
00:31:42,100 --> 00:31:43,768
LENGENING SURGERY AND TRYING TO

673
00:31:43,835 --> 00:31:45,737
MEASURE THE STIFFNESS AN SEEING

674
00:31:45,803 --> 00:31:48,139
IF IF THE COLLAGENASE MAKE A

675
00:31:48,206 --> 00:31:50,708
DIFFERENCE AND SAW IT DID.

676
00:31:50,775 --> 00:31:55,013
BEFORE THE COLLAGENASE THE

677
00:31:55,079 --> 00:31:56,714
MUSCLE WAS STIFFER THAN AFTER

678
00:31:56,781 --> 00:31:57,949
AND THINK IT COULD BE A

679
00:31:58,016 --> 00:32:02,220
POTENTIAL NEW TARGET FOR

680
00:32:02,287 --> 00:32:02,520
TREATMENT.

681
00:32:02,587 --> 00:32:06,924
AS A POTENTIAL ALTERNATIVE TO

682
00:32:06,991 --> 00:32:10,428
BOTULINUM INTOXIN WHICH AFFECT

683
00:32:10,495 --> 00:32:12,463
THE MOTOR NEUROJUNCTION.

684
00:32:12,530 --> 00:32:18,303
WE'RE DOING MRE A NOVEL INVASIVE

685
00:32:18,369 --> 00:32:20,004
WAY OF MEASURING THE MUSCLE

686
00:32:20,071 --> 00:32:21,039
PROPERTIES AND TRYING TO

687
00:32:21,105 --> 00:32:21,839
CORRELATE ALL THAT.

688
00:32:21,906 --> 00:32:23,841
THOSE ARE OUR NEXT STEPS THAT

689
00:32:23,908 --> 00:32:26,311
WE'RE WORKING ON AND JASON'S

690
00:32:26,377 --> 00:32:28,513
WORKING ON SOME ADDITIONAL GRANT

691
00:32:28,579 --> 00:32:29,514
APPLICATIONS RIGHT NOW.

692
00:32:29,580 --> 00:32:31,115
WE'RE LOOKING AT CONTINUING TO

693
00:32:31,182 --> 00:32:36,554
GET MORE SAMPLE SIZES AND

694
00:32:36,621 --> 00:32:43,328
EXPLORING THE EPIGENETIC

695
00:32:43,394 --> 00:32:46,197
IMPLICATIONS ON THE MUSCLE WORK

696
00:32:46,264 --> 00:32:51,169
AND THE MOLECULE AND EXPAND OUR

697
00:32:51,235 --> 00:32:54,105
MUSCLE WORK LIKE PHYSICAL

698
00:32:54,172 --> 00:32:55,873
THERAPY AND POTENTIALLY

699
00:32:55,940 --> 00:32:59,544
COLLAGENASE IF IT GOT TO BE A

700
00:32:59,610 --> 00:33:01,245
DELIVERY DEVICE.

701
00:33:01,312 --> 00:33:04,515
SHIFTING GEARS TO TALKING ABOUT

702
00:33:04,582 --> 00:33:05,516
POSTOPERATIVE CARE.

703
00:33:05,583 --> 00:33:07,352
HOW DO YOU MEASURE WALKING

704
00:33:07,418 --> 00:33:09,487
ACTIVITY IN CHILDREN AND

705
00:33:09,554 --> 00:33:11,356
ADOLESCENTS WITH CP?

706
00:33:11,422 --> 00:33:17,462
WE'RE ALL FOCUSSED ON ACTIVITY

707
00:33:17,528 --> 00:33:19,897
AND WE ALL HAVE OUR APPLE

708
00:33:19,964 --> 00:33:22,467
WATCHES AND FITBITS BUT WHAT'S

709
00:33:22,533 --> 00:33:24,869
THE RELIABILITY FOR USING THAT

710
00:33:24,936 --> 00:33:26,504
FOR PERSONS WITH DISABILITIES.

711
00:33:26,571 --> 00:33:27,972
THAT'S WHERE STEP WATCH COMES IN

712
00:33:28,039 --> 00:33:31,943
AND IT'S ON THE ANKLE AND HIGHLY

713
00:33:32,009 --> 00:33:34,645
RELIABLE AND CALIBRATED TO EACH

714
00:33:34,712 --> 00:33:36,347
CHILD'S WALKING PATTERN.

715
00:33:36,414 --> 00:33:37,382
THERE'S BEEN EVIDENCE IN THE

716
00:33:37,448 --> 00:33:40,952
LITERATURE HOW THAT CAN BE USED

717
00:33:41,018 --> 00:33:42,220
IN ORDER TO DETERMINE WALKING

718
00:33:42,286 --> 00:33:43,221
PATTERNS IN CHILDREN AND WE'VE

719
00:33:43,287 --> 00:33:46,057
BEEN ABLE TO VALIDATE A PROTOCOL

720
00:33:46,124 --> 00:33:48,025
TO MEASURE EVERY DAY WALKING

721
00:33:48,092 --> 00:33:52,130
ACTIVITY IN YOUTH WITH CP.

722
00:33:52,196 --> 00:33:56,834
WHEN KIDS GO TO OUR GATE LAB THE

723
00:33:56,901 --> 00:33:59,971
KNOCK IS IT'S ARTIFICIAL YOU'RE

724
00:34:00,037 --> 00:34:02,673
TESTING CHILDREN PUTTING ON

725
00:34:02,740 --> 00:34:06,110
THEIR BEST DOCTORS WALK AND MAY

726
00:34:06,177 --> 00:34:07,512
NOT ALWAYS BE REPRESENTATIVE.

727
00:34:07,578 --> 00:34:09,414
WE DO MULTIPLE PASS TO GET THEM

728
00:34:09,480 --> 00:34:10,948
FATIGUED AND GET THEM THINKING

729
00:34:11,015 --> 00:34:12,450
ABOUT OTHER THINGS OTHER THAN

730
00:34:12,517 --> 00:34:17,522
PUTTING ON THEIR BEST WALK BUT

731
00:34:17,588 --> 00:34:19,924
STILL SENDING KIDS HOME WITH A

732
00:34:19,991 --> 00:34:21,759
STEP WATCH TO MONITOR WHAT

733
00:34:21,826 --> 00:34:25,029
THEY'RE WALKING ACTIVITY IS AND

734
00:34:25,096 --> 00:34:26,297
ABLE TO QUANTIFY THAT AGAINST

735
00:34:26,364 --> 00:34:28,399
THE LEVELS AND INTEGRATED THAT

736
00:34:28,466 --> 00:34:30,268
IN OUR CLINICAL PRACTICE.

737
00:34:30,334 --> 00:34:32,703
YOU SEE THE BLACK LINE IS THE

738
00:34:32,770 --> 00:34:36,407
AVERAGE REFERENCE VALUE FOR

739
00:34:36,474 --> 00:34:38,709
CHILDREN WITH GMFCS AND THIS IS

740
00:34:38,776 --> 00:34:40,778
FOR LEVEL 2 FUNCTION.

741
00:34:40,845 --> 00:34:43,815
YOU CAN SEE THEY'RE DOING QUITE

742
00:34:43,881 --> 00:34:48,786
WELL AND EXCEEDING THE TYPICAL

743
00:34:48,853 --> 00:34:50,455
VALUE AT LEVEL 2 FUNCTION.

744
00:34:50,521 --> 00:34:51,489
WE'RE ABLE TO EXPAND THAT AND

745
00:34:51,556 --> 00:34:54,759
GET INTO THE DETAILS AND

746
00:34:54,826 --> 00:34:56,027
UNDERSTAND HOW WELL KIDS RESUME

747
00:34:56,093 --> 00:34:59,997
THEIR WALKING ACTIVITIES IN THE

748
00:35:00,064 --> 00:35:01,132
POST-OP PERIOD.

749
00:35:01,199 --> 00:35:06,471
HERE'S OUR STUDY LOOKING AT

750
00:35:06,537 --> 00:35:06,938
THAT.

751
00:35:07,004 --> 00:35:10,107
THESE ARE CHILDREN WHO ARE

752
00:35:10,174 --> 00:35:13,911
SINGLE EVENT MULTI-LEVEL SURGERY

753
00:35:13,978 --> 00:35:17,081
AND THEIR GAIT DEVIATION INDEX

754
00:35:17,148 --> 00:35:18,516
OR QUALITY IMPROVED BUT WE

755
00:35:18,583 --> 00:35:23,187
SHOWED THESE KIDS WERE ABLE TO

756
00:35:23,254 --> 00:35:25,890
RECOVER THEIR PRE-OPERATIVE

757
00:35:25,957 --> 00:35:27,558
WALKING LEVEL INDEPENDENT OF THE

758
00:35:27,625 --> 00:35:29,060
LEVEL AND THE RATE OF RECOVERY

759
00:35:29,126 --> 00:35:32,563
WAS AFFECTED BY THE SURGICAL

760
00:35:32,630 --> 00:35:33,231
BURDEN.

761
00:35:33,297 --> 00:35:36,834
LOW BURDEN ORTHOPEDIC SURGERY

762
00:35:36,901 --> 00:35:41,405
WHERE WE'RE ONLY DOING SOFT

763
00:35:41,472 --> 00:35:46,511
TISSUE WORK OR ONE OSTEOMY WERE

764
00:35:46,577 --> 00:35:48,446
EXCEEDING THEIR FUNCTION BY THE

765
00:35:48,513 --> 00:35:49,480
SIX MONTH MARK.

766
00:35:49,547 --> 00:35:51,215
IF WE DO A HIGH BURDEN SURGERY

767
00:35:51,282 --> 00:35:56,354
WHICH WE OFTEN DO AND DO

768
00:35:56,420 --> 00:35:59,891
MULTIPLE OSTEOTOMY AT THE SAME

769
00:35:59,957 --> 00:36:02,026
PERIOD AND IT TAKES THEM NOT

770
00:36:02,093 --> 00:36:04,028
SHOCKINGLY A LONG TIME TO RETURN

771
00:36:04,095 --> 00:36:04,829
TO BASELINE.

772
00:36:04,896 --> 00:36:08,032
12 TO 18 MONTHS TO RETURN TO

773
00:36:08,099 --> 00:36:08,299
BASELINE.

774
00:36:08,366 --> 00:36:11,269
THAT WAS FUNDAMENTAL FOR US TO

775
00:36:11,335 --> 00:36:13,237
START COUNSELLING FAMILIES WHAT

776
00:36:13,304 --> 00:36:15,506
TO EXPECT BECAUSE YOU CAN

777
00:36:15,573 --> 00:36:17,608
IMAGINE IF YOU GET INTO THE

778
00:36:17,675 --> 00:36:20,211
NINE, 10 MONTH RANGE AND

779
00:36:20,278 --> 00:36:22,079
STARTING TO STAGNATE THESE KIDS

780
00:36:22,146 --> 00:36:24,048
CAN OFTEN GET DISCOURAGED BY

781
00:36:24,115 --> 00:36:24,248
THAT.

782
00:36:24,315 --> 00:36:25,616
THIS DATA IS SOMETHING WE HAVE

783
00:36:25,683 --> 00:36:28,719
WITH ALL OF OUR PRE-OPERATIVE

784
00:36:28,786 --> 00:36:31,455
CONSULTATIONS AND BRING IT UP

785
00:36:31,522 --> 00:36:32,990
CONSTANTLY THROUGH THEIR

786
00:36:33,057 --> 00:36:33,691
REHABILITATIVE PERIOD.

787
00:36:33,758 --> 00:36:37,695
WHAT'S OUR FUTURE PLANS FOR WALK

788
00:36:37,762 --> 00:36:37,962
RESEARCH?

789
00:36:38,029 --> 00:36:39,430
HIP SURVEILLANCE IS WELL

790
00:36:39,497 --> 00:36:41,632
ESTABLISHED IN CEREBRAL PALSY TO

791
00:36:41,699 --> 00:36:46,637
DECREASE THE RATES OF HIP

792
00:36:46,704 --> 00:36:47,772
DISLOCATION AND DECREASE CHRONIC

793
00:36:47,838 --> 00:36:48,339
HIP PAIN.

794
00:36:48,406 --> 00:36:52,009
OUR IDEA IS TO EXPAND THE

795
00:36:52,076 --> 00:36:53,511
WALKING ACTIVITY RESEARCH INTO

796
00:36:53,578 --> 00:36:56,347
KNEE SURVEILLANCE AND CORRELATE

797
00:36:56,414 --> 00:37:01,619
THE KNEE FLEXION CONTRACT URE

798
00:37:01,686 --> 00:37:04,155
AND LOOKING TO LAUNCH A

799
00:37:04,221 --> 00:37:05,056
PROSPECTIVE PILOT STUDY THIS

800
00:37:05,122 --> 00:37:12,797
YEAR.

801
00:37:12,863 --> 00:37:14,665
ALSO VERY PROUD OF ADULT

802
00:37:14,732 --> 00:37:15,366
RESEARCH.

803
00:37:15,433 --> 00:37:16,667
WE'RE FINDING LOTS OF ISSUES AND

804
00:37:16,734 --> 00:37:18,502
CONCERNS CAN ABOUT WHAT HAPPENED

805
00:37:18,569 --> 00:37:22,239
TO OUR ADULTS WITH CP TO OUR

806
00:37:22,306 --> 00:37:24,508
ADOLESCENTS WITH CP ONCE THEY

807
00:37:24,575 --> 00:37:26,043
REACH ADULTHOOD.

808
00:37:26,110 --> 00:37:28,446
WE SEE MOBILITY TO CLIMB IS

809
00:37:28,512 --> 00:37:29,013
COMMON.

810
00:37:29,080 --> 00:37:30,881
WE SEE THERE'S COMMON COMPLAINTS

811
00:37:30,948 --> 00:37:36,587
OF PAIN AND IF YOU LOOK AT THE

812
00:37:36,654 --> 00:37:38,189
REVISED NEW PLOTS IF YOU LOOK AT

813
00:37:38,255 --> 00:37:40,691
THE RIGHT HAND ASPECT OF THIS

814
00:37:40,758 --> 00:37:43,828
PLOT, ALMOST ALL THE GMFCS

815
00:37:43,894 --> 00:37:46,097
LEVELS DECREASE AND FUNCTION IN

816
00:37:46,163 --> 00:37:49,634
LATE ADOLESCENCE AND EARLY

817
00:37:49,700 --> 00:37:53,371
ADULTHOOD BY MEASURED BY GFM66

818
00:37:53,437 --> 00:37:55,506
AND HAVE SEEN THAT CLINICALLY

819
00:37:55,573 --> 00:37:59,310
AND GLAD TO SEE IT VALIDATED BUT

820
00:37:59,377 --> 00:38:00,878
THERE'S BIG CONCERNS ABOUT THAT

821
00:38:00,945 --> 00:38:02,747
AND WE'RE FORTUNATE.

822
00:38:02,813 --> 00:38:08,586
DR. MILLER WAS PERSISTENT ABOUT

823
00:38:08,653 --> 00:38:11,155
DOING GAIT ANALYSIS IN

824
00:38:11,222 --> 00:38:12,990
ADOLESCENCE AND WE HAVE ADULTS

825
00:38:13,057 --> 00:38:15,693
IN THEIR 30s AND 40s THAT

826
00:38:15,760 --> 00:38:18,396
CONTINUE TO COME BACK TO OUR

827
00:38:18,462 --> 00:38:21,499
GAIT LAB TO COMPARE RESULTS.

828
00:38:21,565 --> 00:38:24,235
WE REALIZE THIS CONTRIBUTED TO

829
00:38:24,301 --> 00:38:25,369
THE KNOWLEDGE BASE AND HERE'S

830
00:38:25,436 --> 00:38:27,471
OUR FINDINGS.

831
00:38:27,538 --> 00:38:29,306
THE BLUE PLOTS ARE THEIR

832
00:38:29,373 --> 00:38:30,474
ADOLESCENT MEAN VALUES AND RED

833
00:38:30,541 --> 00:38:36,147
IS ADULT MEAN VALUES AND YOU CAN

834
00:38:36,213 --> 00:38:39,050
SEE THE GAIT INDEX I MENTIONED

835
00:38:39,116 --> 00:38:40,551
BEFORE IS ACTUALLY STABLE INTO

836
00:38:40,618 --> 00:38:43,688
THEIR SECOND, THIRD AND FOURTH

837
00:38:43,754 --> 00:38:43,921
DECADES.

838
00:38:43,988 --> 00:38:46,557
IN THIS POPULATION THEY REALLY

839
00:38:46,624 --> 00:38:49,593
DIDN'T LOSE A LOT OF FUNCTION IN

840
00:38:49,660 --> 00:38:52,363
TERMS OF MEASURED.

841
00:38:52,430 --> 00:38:53,631
WE WERE PLEASED BY THAT.

842
00:38:53,698 --> 00:38:55,066
MAYBE THAT'S BECAUSE WE WERE SO

843
00:38:55,132 --> 00:39:01,906
PROACTIVE AND THEY'RE HAPPY FOR

844
00:39:01,972 --> 00:39:04,608
THEM TO KEEP COMING BACK IN

845
00:39:04,675 --> 00:39:06,143
THEIR ADULT TIME FRAMES.

846
00:39:06,210 --> 00:39:07,878
WE LOOKED AT PROMISE IN THE

847
00:39:07,945 --> 00:39:10,414
GROUP AND THE PAIN INTERFERENCE

848
00:39:10,481 --> 00:39:12,983
WAS SLIGHTLY HIGHER THAN THE

849
00:39:13,050 --> 00:39:15,152
NORMATIVE VALUES AND THE

850
00:39:15,219 --> 00:39:16,654
PREVALENCE OF MODERATE TO SEVERE

851
00:39:16,721 --> 00:39:18,355
WAS HIGH AT 36%.

852
00:39:18,422 --> 00:39:23,928
CONSISTENT ONE THE OTHER VALUES

853
00:39:23,994 --> 00:39:24,328
THAT'S LITERATURE.

854
00:39:24,395 --> 00:39:27,665
AND THEN WHEN WE LOOKED AT

855
00:39:27,732 --> 00:39:30,901
WALKING ACTIVITY AND WE SEE THEY

856
00:39:30,968 --> 00:39:32,770
ACTUALLY LOSE GROUND IN THEIR

857
00:39:32,837 --> 00:39:34,338
WALKING ACTIVITY THOUGH IN THE

858
00:39:34,405 --> 00:39:37,041
GAIT LAB THEY HAD CAPACITY TO

859
00:39:37,108 --> 00:39:42,446
MAINTAIN THEIR GAIT INDEXES AND

860
00:39:42,513 --> 00:39:47,151
THEIR GFMMs AND THAT HAPPENS IN

861
00:39:47,218 --> 00:39:48,552
TYPICALLY DEVELOPED ADULTS.

862
00:39:48,619 --> 00:39:50,254
THEY'RE NOT AS ACTIVE IN THEIR

863
00:39:50,321 --> 00:39:54,391
20s OR 30s OR 40s AS TEEN AGE

864
00:39:54,458 --> 00:39:57,495
YEARS AND THAT'S SIMILAR BUT THE

865
00:39:57,561 --> 00:40:00,030
PHYSICAL FUNCTION AS MEASURED BY

866
00:40:00,097 --> 00:40:01,766
WALKING ACTIVITY IS CORRELATED

867
00:40:01,832 --> 00:40:04,168
ONE GMFCS AS WE SEE IN THE

868
00:40:04,235 --> 00:40:04,468
MUSCLES.

869
00:40:04,535 --> 00:40:06,904
ONE THING WE'RE EXCITED TO SEE

870
00:40:06,971 --> 00:40:08,305
AND TO MEASURE IN THE

871
00:40:08,372 --> 00:40:11,909
SELF-REPORTED OUTCOMES WITH

872
00:40:11,976 --> 00:40:15,146
ADULTS WITH CP WAS THAT WE

873
00:40:15,212 --> 00:40:17,148
NOTICED DEPRESSION WASN'T

874
00:40:17,214 --> 00:40:19,250
DIFFERENT THAN AGE MAP CONTROL

875
00:40:19,316 --> 00:40:19,884
GROUPS AND COLLEGE EDUCATION

876
00:40:19,950 --> 00:40:23,788
LEVELS WERE ALSO SIMILAR.

877
00:40:23,854 --> 00:40:26,490
HOWEVER, THIS WAS THE BIG

878
00:40:26,557 --> 00:40:27,224
DIFFERENCE.

879
00:40:27,291 --> 00:40:29,059
EMPLOYMENT WAS LOWER IN OUR

880
00:40:29,126 --> 00:40:32,797
ADULT COHORT GROUP THAN

881
00:40:32,863 --> 00:40:34,198
TYPICALLY DEVELOPED AND RATES OF

882
00:40:34,265 --> 00:40:36,567
DISABILITY INSURANCE WAS HIGHER.

883
00:40:36,634 --> 00:40:39,570
WE KNOW WE DIDN'T CONTROL VERY

884
00:40:39,637 --> 00:40:40,337
WELL INTELLECTUAL DISABILITY AS

885
00:40:40,404 --> 00:40:42,139
A CONFOUNDING VARIABLE AND WE

886
00:40:42,206 --> 00:40:43,707
KNOW IT'S TIME FOR TO US REDO

887
00:40:43,774 --> 00:40:45,042
THAT STUDY AND WE'RE WORKING ON

888
00:40:45,109 --> 00:40:47,311
TRYING TO COME UP ONE WAYS TO

889
00:40:47,378 --> 00:40:52,550
CONTROL FOR THAT BUT STILL WE

890
00:40:52,616 --> 00:40:54,718
FELT EMPLOYMENT OPPORTUNITIES

891
00:40:54,785 --> 00:40:56,387
ARE LESS FOR THIS POPULATION

892
00:40:56,453 --> 00:40:58,389
WHICH IS DIFFERENT WHERE THE

893
00:40:58,455 --> 00:40:59,957
EDUCATIONAL OPPORTUNITIES ARE

894
00:41:00,024 --> 00:41:01,091
PROBABLY STILL QUITE EQUAL.

895
00:41:01,158 --> 00:41:03,227
THAT'S OUR NEXT STEP TO CONTINUE

896
00:41:03,294 --> 00:41:05,062
WITH THE COHORT ANALYSIS AND TRY

897
00:41:05,129 --> 00:41:08,732
TO CONTROL FOR THAT BETTER.

898
00:41:08,799 --> 00:41:11,468
SO, GETTING BACK TO MY OWN

899
00:41:11,535 --> 00:41:15,406
PERSONAL JOURNEY, BETWEEN MY TWO

900
00:41:15,472 --> 00:41:17,174
CHILDREN, THEY HAVE HAD NEARLY

901
00:41:17,241 --> 00:41:20,044
EVERY ORTHOPEDIC SURGICAL

902
00:41:20,110 --> 00:41:21,712
PROCEDURE WE PERFORM IN THE

903
00:41:21,779 --> 00:41:24,615
POPULATION AND THE TWO X-RAY MY

904
00:41:24,682 --> 00:41:26,250
KIDS' X-RAYS.

905
00:41:26,317 --> 00:41:28,652
AND UNFACT BENJAMIN MY OLD ARE

906
00:41:28,719 --> 00:41:32,523
SON HAD AN ORTHOPEDIC SURGERY

907
00:41:32,590 --> 00:41:33,324
WEEKS AGO.

908
00:41:33,390 --> 00:41:35,526
AND SO I TRIED TO SHARE THOSE

909
00:41:35,593 --> 00:41:38,629
EXPERIENCES WITH MY FAMILIES.

910
00:41:38,696 --> 00:41:39,797
I REALLY TRY TO SURE THOSE

911
00:41:39,864 --> 00:41:41,065
EXPERIENCES AS A FATHER AND

912
00:41:41,131 --> 00:41:42,566
SURGEON AND TELL THEM HOW IT

913
00:41:42,633 --> 00:41:43,434
WENT FOR ME.

914
00:41:43,500 --> 00:41:45,870
I TELL THEM WHAT I WAS GLAD I

915
00:41:45,936 --> 00:41:47,738
DID AND TELL THEM SOME OF MY

916
00:41:47,805 --> 00:41:49,540
REGRETS ABOUT THINGS I DIDN'T DO

917
00:41:49,607 --> 00:41:51,141
OR THINGS I DID DO.

918
00:41:51,208 --> 00:41:54,044
I TRY TO ANSWER THE QUESTIONS

919
00:41:54,111 --> 00:41:57,281
THAT I HAD WHEN WE WERE MAKING

920
00:41:57,348 --> 00:42:00,117
DECISIONS ABOUT THE SURGICAL

921
00:42:00,184 --> 00:42:01,652
PATHWAYS WE WOULD CHOOSE.

922
00:42:01,719 --> 00:42:05,890
BUT STILL I WOULD HAVE TO SAY

923
00:42:05,956 --> 00:42:09,226
THAT EVERY TIME WE EXPERIENCE A

924
00:42:09,293 --> 00:42:10,794
NEW CURVEBALL WE'RE NOT THAT

925
00:42:10,861 --> 00:42:12,029
WELL PREPARED FOR IT.

926
00:42:12,096 --> 00:42:16,734
AND I'M PROBABLY THE MOST

927
00:42:16,800 --> 00:42:18,035
INFORMED DAD/PEDIATRIC SURGEON

928
00:42:18,102 --> 00:42:19,303
ON THE PLANET BUT STILL NOT

929
00:42:19,370 --> 00:42:22,006
PREPARED FOR ALL THE THINGS I

930
00:42:22,072 --> 00:42:23,007
THINK I'M PREPARED FOR.

931
00:42:23,073 --> 00:42:25,409
WE'RE NOT PREPARED FOR IT

932
00:42:25,476 --> 00:42:27,177
PHYSICALLY, WARE NOT PREPARED

933
00:42:27,244 --> 00:42:30,814
FOR IT EMOTIONALLY OR

934
00:42:30,881 --> 00:42:31,215
PSYCHOLOGICALLY.

935
00:42:31,282 --> 00:42:32,816
SO THAT'S WHERE I REALLY MADE A

936
00:42:32,883 --> 00:42:34,618
DECISION WE WERE GOING TO TRY TO

937
00:42:34,685 --> 00:42:38,222
MAKE A BIG EMPHASIS ON THE BIO

938
00:42:38,289 --> 00:42:39,623
PSYCHOSOCIAL MODEL OF CP.

939
00:42:39,690 --> 00:42:43,060
THIS IS A REVIEW ARTICLE FROM

940
00:42:43,127 --> 00:42:44,895
THE AMERICAN ORTHOPEDIC

941
00:42:44,962 --> 00:42:47,298
ASSOCIATION LOOKING THAT THE BIO

942
00:42:47,364 --> 00:42:50,734
PSYCHOSOCIAL MODEL OF ADULT

943
00:42:50,801 --> 00:42:55,005
ORTHOPEDIC ISSUES LIKE HIP

944
00:42:55,072 --> 00:42:56,707
REPLACEMENTS AND CARPAL TUNNEL

945
00:42:56,774 --> 00:42:59,977
AND THE OUTCOMES WE MEASURE ARE

946
00:43:00,044 --> 00:43:08,819
DRUTH HAVE ANN INTERSECTION OF

947
00:43:08,886 --> 00:43:19,430
BIOLOGY AND PSYCHOLOGY AND THE

948
00:43:21,298 --> 00:43:22,599
SOCIAL DERNTERMINATES OF HEALTH

949
00:43:22,666 --> 00:43:24,435
AND IF I DO THIS GREAT SURGERY

950
00:43:24,501 --> 00:43:27,171
AND SEND A KID HOME TO A TOUGH

951
00:43:27,237 --> 00:43:29,340
HOME ENVIRONMENT THAT WE HAVE

952
00:43:29,406 --> 00:43:35,079
NOT PROPERLY ADDRESSED THEIR

953
00:43:35,145 --> 00:43:36,146
NEEDS IT'S PROBABLY NOT GOING TO

954
00:43:36,213 --> 00:43:37,915
BE A GOOD OUTCOME AND WE NEED TO

955
00:43:37,982 --> 00:43:41,485
SHIFT OUR GEARS ON THAT.

956
00:43:41,552 --> 00:43:48,192
AND PETER ROSENBAUM IS A FORMER

957
00:43:48,258 --> 00:43:51,729
PRESIDENT OF ACFF AND OF COURSE

958
00:43:51,795 --> 00:43:54,331
HE TALKS ABOUT THE ICF AND HOW

959
00:43:54,398 --> 00:43:56,266
ENVIRONMENT MATTERS.

960
00:43:56,333 --> 00:44:01,872
BUT FOR THE CHILD FOR CHILDREN,

961
00:44:01,939 --> 00:44:05,209
THE FAMILY IS THE MAIN

962
00:44:05,275 --> 00:44:05,509
ENVIRONMENT.

963
00:44:05,576 --> 00:44:09,113
OVER ALL THESE FAMILIES AS A

964
00:44:09,179 --> 00:44:12,483
WHOLE THEIR WELL BEING IS

965
00:44:12,549 --> 00:44:12,750
IMPAIRED.

966
00:44:12,816 --> 00:44:15,052
OUR WELL BEING AS A FAMILY HAS

967
00:44:15,119 --> 00:44:17,321
BEEN IMPAIRED AT TIMES AS WE

968
00:44:17,388 --> 00:44:18,188
LEARN WITH COPE WITH HAVING

969
00:44:18,255 --> 00:44:22,459
CHILDREN AND FAMILY MEMBERS WITH

970
00:44:22,526 --> 00:44:23,160
DISABILITIES.

971
00:44:23,227 --> 00:44:25,329
PETER SAYS FAMILY-CENTERED CARE

972
00:44:25,396 --> 00:44:29,266
SHOULD ADDRESS THE NEEDS OF THE

973
00:44:29,333 --> 00:44:29,533
FAMILIES.

974
00:44:29,600 --> 00:44:30,267
MAYBE THAT'S MORE IMPORTANT THAN

975
00:44:30,334 --> 00:44:35,072
THE MEDICINE OR SURGERY THAT WE

976
00:44:35,139 --> 00:44:35,372
DO.

977
00:44:35,439 --> 00:44:40,811
THAT BRINGS US TO THIS.

978
00:44:40,878 --> 00:44:42,212
I MADE A DECISION IN WORKING

979
00:44:42,279 --> 00:44:45,816
WITH A CLINICAL PSYCHOLOGIST

980
00:44:45,883 --> 00:44:48,052
HERE AND WE KNOW I MADE THIS

981
00:44:48,118 --> 00:44:49,353
ARGUMENT WE KNOW CP HAS

982
00:44:49,420 --> 00:44:51,321
SIGNIFICANT CHALLENGES TO

983
00:44:51,388 --> 00:44:52,856
FAMILIES AND HAVE INCREASED

984
00:44:52,923 --> 00:44:54,324
STRESS AND POOR MENTAL

985
00:44:54,391 --> 00:44:56,026
FUNCTIONING AND WE'RE NOT

986
00:44:56,093 --> 00:44:58,028
ADDRESSING THESE NEEDS.

987
00:44:58,095 --> 00:45:02,699
SO ANN HAD CREATED THIS

988
00:45:02,766 --> 00:45:04,034
PSYCHOSOCIAL ASSESSMENT TOOL

989
00:45:04,101 --> 00:45:05,135
THAT HAS BEEN INSTRUMENTAL IN

990
00:45:05,202 --> 00:45:07,404
ADDRESSING THE NEEDS IN THE

991
00:45:07,471 --> 00:45:08,839
ONCOLOGY POPULATION AND

992
00:45:08,906 --> 00:45:10,340
PEDIATRIC HEART DISEASE AS WELL.

993
00:45:10,407 --> 00:45:12,376
IT ADDRESSES POTENTIAL STRESSORS

994
00:45:12,443 --> 00:45:14,678
AND CATEGORIZES FAMILIES TO

995
00:45:14,745 --> 00:45:16,880
THREE DIFFERENT LEVELS OF RISK

996
00:45:16,947 --> 00:45:18,782
ACCORDING TO THE PEDIATRIC

997
00:45:18,849 --> 00:45:19,416
PSYCHOSOCIAL MOLE.

998
00:45:19,483 --> 00:45:22,319
I SAID WE HAVE TO DO THIS IN CP.

999
00:45:22,386 --> 00:45:23,854
SO WE PULLED TOGETHER SOME

1000
00:45:23,921 --> 00:45:26,323
FUNDING AND CREATED A POSTDOC

1001
00:45:26,390 --> 00:45:28,859
POSITION IN PSYCHOLOGY AND CP

1002
00:45:28,926 --> 00:45:33,163
EMBEDDED IN OUR CLUBBIC AND SO

1003
00:45:33,230 --> 00:45:37,234
OUR GOAL IS TO CREATE THIS

1004
00:45:37,301 --> 00:45:38,535
PSYCHOSOCIAL SCREENING TO DO

1005
00:45:38,602 --> 00:45:39,837
IDENTIFICATION OF FAMILIES MOST

1006
00:45:39,903 --> 00:45:41,572
AT NEED AND HOPEFULLY COME UP

1007
00:45:41,638 --> 00:45:42,673
WITH THE APPROPRIATE ALLOCATION

1008
00:45:42,739 --> 00:45:44,975
OF RESOURCES.

1009
00:45:45,042 --> 00:45:47,644
AND IT'S REALLY IMPORTANT THAT

1010
00:45:47,711 --> 00:45:51,181
WE BRING TOGETHER STAKEHOLDERS,

1011
00:45:51,248 --> 00:45:51,782
CAREGIVERS AS WELL AS HEALTH

1012
00:45:51,849 --> 00:45:53,050
CARE PROVIDERS TO MAKE SURE WE

1013
00:45:53,117 --> 00:45:54,451
ARE GETTING ALL THE VOICES OF

1014
00:45:54,518 --> 00:45:56,753
THE PATIENTS AN CAREGIVERS

1015
00:45:56,820 --> 00:45:58,322
HIGHLIGHTED IN THIS ADAPTATION

1016
00:45:58,388 --> 00:45:59,690
PROCESS AND THAT'S WHERE WE ARE.

1017
00:45:59,756 --> 00:46:01,859
WE'VE DONE OUR FIRST STUDY AND

1018
00:46:01,925 --> 00:46:04,294
HAVE DONE A SYSTEMATIC

1019
00:46:04,361 --> 00:46:06,997
LITERATURE REVIEW AND HAD

1020
00:46:07,064 --> 00:46:09,399
QUALITATIVE INTERVIEWS WITH

1021
00:46:09,466 --> 00:46:11,368
MULTI-DISCIPLINARY HEALTH CARE

1022
00:46:11,435 --> 00:46:14,438
PROVIDERS TO MODIFY THE PATH TO

1023
00:46:14,505 --> 00:46:20,043
THE CP-PAT AND BROUGHT IN

1024
00:46:20,110 --> 00:46:23,313
CHALLENGES THAT WEREN'T IN THE

1025
00:46:23,380 --> 00:46:25,349
CARDIAC AND ONCOLOGY POPULATION

1026
00:46:25,415 --> 00:46:30,053
AND MOTOR CHALLENGING AND

1027
00:46:30,120 --> 00:46:32,389
MEDICAL COMPLEXITIES AND SOCIAL

1028
00:46:32,456 --> 00:46:33,724
DETERMINATES OF HATH.

1029
00:46:33,790 --> 00:46:36,393
AND NEXT STEPS IN IMPLEMENTING

1030
00:46:36,460 --> 00:46:46,069
THE PAT-CP WE HOPE TO DEVELOP

1031
00:46:46,136 --> 00:46:47,004
THE DELIVERY OF THE

1032
00:46:47,070 --> 00:46:48,639
EVIDENCE-BASED PSYCHOSOCIAL CARE

1033
00:46:48,705 --> 00:46:50,941
AND WE LOOK AT OUTCOMES OF

1034
00:46:51,008 --> 00:46:52,376
SURGERY BUT I'M MOSTLY EXCITED

1035
00:46:52,442 --> 00:46:53,644
ABOUT THIS BECAUSE IF WE COULD

1036
00:46:53,710 --> 00:46:55,646
COME UP WITH THIS TO SCREEN FOR

1037
00:46:55,712 --> 00:46:58,749
THIS LIKE WE SCREENED FOR HIP

1038
00:46:58,815 --> 00:47:01,718
PATHOLOGY OR FOR OTHER THINGS, I

1039
00:47:01,785 --> 00:47:03,187
THINK THIS COULD MAKE A BIG

1040
00:47:03,253 --> 00:47:04,154
IMPACT IN OUR FAMILIES.

1041
00:47:04,221 --> 00:47:05,589
IN ADDITION WE HOPE TO BETTER

1042
00:47:05,656 --> 00:47:08,125
UNDERSTAND THE IMPACTS OF SOCIAL

1043
00:47:08,192 --> 00:47:12,696
DETERMINATES OF HATH AND RACIAL

1044
00:47:12,763 --> 00:47:13,664
DISCRIMINATION AND HOW THE KIDS

1045
00:47:13,730 --> 00:47:13,964
DO.

1046
00:47:14,031 --> 00:47:16,033
I WANT TO THANK YOU FOR

1047
00:47:16,099 --> 00:47:18,936
LISTENING TO OUR JOURNEY, MY

1048
00:47:19,002 --> 00:47:25,509
FAMILY'SYY -- JOURNEY FROM NASA

1049
00:47:25,576 --> 00:47:28,178
TO ACPDM.

1050
00:47:28,245 --> 00:47:30,881
WON'T STEAL THE THUNDER FOR THIS

1051
00:47:30,948 --> 00:47:33,016
AFTERNOON BUT I'VE TAKEN MORE

1052
00:47:33,083 --> 00:47:34,017
THAN I'VE GIVEN.

1053
00:47:34,084 --> 00:47:36,086
I'VE LEARNED MORE AND I'M A

1054
00:47:36,153 --> 00:47:37,054
BETTER RESEARCHER AND PHYSICIAN

1055
00:47:37,120 --> 00:47:38,155
BECAUSE OF SERVING ON THE

1056
00:47:38,222 --> 00:47:42,693
ADVISORY BOARD AND I'M PROUD OF

1057
00:47:42,759 --> 00:47:43,860
OUR WORK HERE AND PROUD WE'RE

1058
00:47:43,927 --> 00:47:45,862
CONTINUING TO IMPROVE THE LIVES

1059
00:47:45,929 --> 00:47:47,698
OF CHILDREN WITH DISABILITIES

1060
00:47:47,764 --> 00:47:49,233
AND THEIR FAMILIES AND IMPROVING

1061
00:47:49,299 --> 00:47:51,101
THE TRANSITION TO ADULTHOOD AND

1062
00:47:51,168 --> 00:47:54,238
PROUD TO HAVE BEEN A PART OF

1063
00:47:54,304 --> 00:47:55,072
NICHD AND NIH AND PROUD OF THE

1064
00:47:55,138 --> 00:47:58,609
WORK WE'RE DOING.

1065
00:47:58,675 --> 00:48:01,144
THIS IS A FAVORITE QUOTE OF MINE

1066
00:48:01,211 --> 00:48:05,716
FROM FDR RALPH SAW IT IN MY

1067
00:48:05,782 --> 00:48:05,949
ADDRESS.

1068
00:48:06,016 --> 00:48:07,451
WE'RE IN THE HOPE BUSINESS.

1069
00:48:07,517 --> 00:48:09,119
WE'RE TAKING CARE OF CHILDREN

1070
00:48:09,186 --> 00:48:10,020
AND THEIR DISABILITIES AND

1071
00:48:10,087 --> 00:48:11,688
FAMILIES AND TRYING TO GIVE THEM

1072
00:48:11,755 --> 00:48:16,827
HOPE FOR THE TRAJECTORY OF THEIR

1073
00:48:16,893 --> 00:48:17,027
LIFE.

1074
00:48:17,094 --> 00:48:19,563
I THINK WE DO THAT AND IT'S A

1075
00:48:19,630 --> 00:48:21,531
GREAT WORTHY CAREER FOR ALL OF

1076
00:48:21,598 --> 00:48:23,800
US AND I LOVE THE QUOTE, WE HAVE

1077
00:48:23,867 --> 00:48:25,502
HEADLINE TO THE HOPE AND BELIEF

1078
00:48:25,569 --> 00:48:27,237
AND CONVICTION THERE'S A BETTER

1079
00:48:27,304 --> 00:48:28,238
LIFE AND BETTER WORLD BEYOND THE

1080
00:48:28,305 --> 00:48:28,472
HORIZON.

1081
00:48:28,538 --> 00:48:38,715
THANK YOU.

1082
00:48:41,551 --> 00:48:43,420
>> WADE, THANK YOU SO MUCH FOR

1083
00:48:43,487 --> 00:48:48,091
SHARING YOUR PERSONAL AND

1084
00:48:48,158 --> 00:48:52,629
PROFESSIONAL JOURNEY WITH US.

1085
00:48:52,696 --> 00:48:56,033
I REALLY APPRECIATE IT.

1086
00:48:56,099 --> 00:48:56,633
YES, THANK YOU.

1087
00:48:56,700 --> 00:49:00,937
IT'S HARD NOT TO BE ABLE TO

1088
00:49:01,004 --> 00:49:01,838
RESPOND AS WE WOULD HAVE IN

1089
00:49:01,905 --> 00:49:10,013
PERSON.

1090
00:49:10,080 --> 00:49:12,416
VERY MOVED BY THE WHOLE STORY.

1091
00:49:12,482 --> 00:49:16,053
OPEN FOR QUESTIONS.

1092
00:49:16,119 --> 00:49:25,929
COLLEAGUES?

1093
00:49:25,996 --> 00:49:26,129
PEPE.

1094
00:49:26,196 --> 00:49:27,497
>> THANK YOU.

1095
00:49:27,564 --> 00:49:34,071
AS A PARENT, I'D LIKE TO KNOW

1096
00:49:34,137 --> 00:49:37,140
WHAT TECHNOLOGICAL FACILITATION

1097
00:49:37,207 --> 00:49:41,478
YOU HAVE USED AND INTERESTED IN

1098
00:49:41,545 --> 00:49:46,516
ANY YOU HAVE TRIED.

1099
00:49:46,583 --> 00:49:55,659
>> THANK YOU.

1100
00:49:55,726 --> 00:49:57,227
THE BOYS ARE NOW 27 AND 25 YEARS

1101
00:49:57,294 --> 00:50:03,967
AGO THE TECHNOLOGIES WE HAD IN

1102
00:50:04,034 --> 00:50:09,906
ALLOWING THEM TO TRY TO DO AND

1103
00:50:09,973 --> 00:50:15,445
THERE WERE SOME EXOSKELETONS

1104
00:50:15,512 --> 00:50:16,713
COMING OUT BUT NOT LIKE NOW.

1105
00:50:16,780 --> 00:50:18,682
I REMEMBER THE FIRST TIME WE SAW

1106
00:50:18,749 --> 00:50:23,620
A GAIT TRAINER.

1107
00:50:23,687 --> 00:50:26,690
THAT WAS FUNDAMENTAL BECAUSE

1108
00:50:26,757 --> 00:50:31,461
MASON IS A 2/3 AND USES CRUTCHES

1109
00:50:31,528 --> 00:50:35,065
A BIT AND BENJAMIN IS MORE OF A

1110
00:50:35,132 --> 00:50:37,200
SOLID 4 BUT HAS LOST FUNCTION

1111
00:50:37,267 --> 00:50:39,903
INTO ADULTHOOD AND ALMOST MORE

1112
00:50:39,970 --> 00:50:40,604
OF A 5.

1113
00:50:40,670 --> 00:50:42,739
HE STILL GETS INTO A STANDER NOW

1114
00:50:42,806 --> 00:50:43,440
AND THEN.

1115
00:50:43,507 --> 00:50:45,876
HE STRUGGLED TO GET INTO A

1116
00:50:45,942 --> 00:50:47,144
REVERSE WALKER.

1117
00:50:47,210 --> 00:50:48,011
HE DIDN'T HAVE THE TRUNK CONTROL

1118
00:50:48,078 --> 00:50:54,718
FOR THAT.

1119
00:50:54,785 --> 00:50:57,053
THE FIRST TIME HE WAS OLDER AND

1120
00:50:57,120 --> 00:50:58,355
HAD A GAIT TRAINER WAS

1121
00:50:58,422 --> 00:50:58,655
FUNDAMENTAL.

1122
00:50:58,722 --> 00:51:01,124
I REMEMBER LOOKING AT THAT AND

1123
00:51:01,191 --> 00:51:04,194
THINKING THAT'S SIMPLE THING AND

1124
00:51:04,261 --> 00:51:06,062
NOT REALLY TECHNOLOGY BUT A GAIT

1125
00:51:06,129 --> 00:51:06,329
TRAINER.

1126
00:51:06,396 --> 00:51:08,632
I WISH I WOULD HAVE HAD THIS

1127
00:51:08,698 --> 00:51:13,303
WHEN HE WAS 3.

1128
00:51:13,370 --> 00:51:16,740
AND HERE I AM HE WAS 7 OR 8 AND

1129
00:51:16,807 --> 00:51:21,311
I WAS PRACTICING AS AN

1130
00:51:21,378 --> 00:51:24,147
ORTHOPEDIC SURGEON THEN AND I

1131
00:51:24,214 --> 00:51:26,950
LOOK AT THE EXOSKELETONS NOW AND

1132
00:51:27,017 --> 00:51:29,486
I ADVOCATE FOR THEM FOR OUR

1133
00:51:29,553 --> 00:51:30,387
FAMILIES.

1134
00:51:30,454 --> 00:51:32,522
I KNOW THEY'RE EXPENSIVE AND

1135
00:51:32,589 --> 00:51:34,925
HARD TO COME BY.

1136
00:51:34,991 --> 00:51:36,092
WHEN I MEET WITH INDUSTRY

1137
00:51:36,159 --> 00:51:37,327
REPRESENTATIVES I ENCOURAGE THEM

1138
00:51:37,394 --> 00:51:39,496
TO DO MORE RESEARCH, EVEN SMALL

1139
00:51:39,563 --> 00:51:42,499
CASE STUDIES TO SHOW IS TO

1140
00:51:42,566 --> 00:51:45,902
DEMONSTRATE TO THE PAYERS THIS

1141
00:51:45,969 --> 00:51:48,038
IS A POTENTIAL IMPORTANCE.

1142
00:51:48,104 --> 00:51:51,608
I SAY ALL THE TIME I TAKE CARE

1143
00:51:51,675 --> 00:51:55,445
OF GMFC4s AND THEY LOSE THE

1144
00:51:55,512 --> 00:51:58,982
ABILITY TO DO STANDING AND

1145
00:51:59,049 --> 00:52:00,116
STANDING PIVOT AND STEPS IN THE

1146
00:52:00,183 --> 00:52:02,786
HOUSE AND THAT IS HUGE.

1147
00:52:02,853 --> 00:52:04,521
THAT'S KIND OF HARD TO TEASE OUT

1148
00:52:04,588 --> 00:52:08,091
WITH THE EARLY ROBOTICS AND

1149
00:52:08,158 --> 00:52:13,029
STANDERS AND DEBATE TRAINERS AND

1150
00:52:13,096 --> 00:52:18,401
THE IMPORTANT TECHNOLOGY WE'VE

1151
00:52:18,468 --> 00:52:24,574
ENCOUNTERED AND WE'RE FORTUNATE

1152
00:52:24,641 --> 00:52:27,978
AND BEING ABLE TO GET ON AN iPAD

1153
00:52:28,044 --> 00:52:29,579
AND WORKS ON THE STATE COUNCIL

1154
00:52:29,646 --> 00:52:31,081
FOR CITIZENS WITH DISABILITIES

1155
00:52:31,147 --> 00:52:34,518
AND THE iPAD REALLY HAS BEEN THE

1156
00:52:34,584 --> 00:52:35,151
BIGGEST PIECE OF TECHNOLOGY FOR

1157
00:52:35,218 --> 00:52:42,459
HIM.

1158
00:52:42,526 --> 00:52:43,460
>> THANK YOU SO MUCH FOR SHARING

1159
00:52:43,527 --> 00:52:44,060
THAT WITH US.

1160
00:52:44,127 --> 00:52:46,596
>> THANKS, WADE FOR A COMPELLING

1161
00:52:46,663 --> 00:52:46,863
TALK.

1162
00:52:46,930 --> 00:52:49,032
I'VE NEVER KNOWN SO MUCH ABOUT

1163
00:52:49,099 --> 00:52:52,135
NASA FLIGHT MECHANICS.

1164
00:52:52,202 --> 00:52:55,272
>> I THOUGHT IT WOULD BE FUN.

1165
00:52:55,338 --> 00:52:57,407
I HAD FUN LOOKING IT UP.

1166
00:52:57,474 --> 00:52:58,308
>> WE'RE NOW COCKTAIL PARTY

1167
00:52:58,375 --> 00:53:01,678
EXPERTS.

1168
00:53:01,745 --> 00:53:03,680
SO COMPELLING, THANK YOU.

1169
00:53:03,747 --> 00:53:08,485
I WANTED TO ASK YOUR THOUGHTS ON

1170
00:53:08,552 --> 00:53:10,921
SORT OF THE READINESS OF THE

1171
00:53:10,987 --> 00:53:12,589
CLINICAL COMMUNITY TO THINK

1172
00:53:12,656 --> 00:53:14,624
OUTSIDE OF THAT MEDICAL MODEL

1173
00:53:14,691 --> 00:53:20,030
BOX WITHIN YOUR FIELD.

1174
00:53:20,096 --> 00:53:22,566
WITHIN ORTHOAND PARTICULARLY IN

1175
00:53:22,632 --> 00:53:24,034
THE SURGICAL AND PROCEDURAL SIDE

1176
00:53:24,100 --> 00:53:26,303
BECAUSE I COULDN'T AGREE MORE

1177
00:53:26,369 --> 00:53:28,305
THE SOCIAL DETERMINATES AND THE

1178
00:53:28,371 --> 00:53:30,240
ENVIRONMENTAL CONTEXT THESE KIDS

1179
00:53:30,307 --> 00:53:32,976
GROW UP IN IS 80% OF WHAT LEADS

1180
00:53:33,043 --> 00:53:37,080
TO SUCCESS OR NOT.

1181
00:53:37,147 --> 00:53:38,348
BECAUSE YOU CAN TAKE SOMEONE

1182
00:53:38,415 --> 00:53:39,616
WITH A LOW LEVEL OF FUNCTION AND

1183
00:53:39,683 --> 00:53:42,252
ADAPT AND IF THE FAMILY

1184
00:53:42,319 --> 00:53:44,054
ENVIRONMENT AND ENVIRONMENT IS

1185
00:53:44,120 --> 00:53:45,055
RIGHT THEY CAN SUCCEED.

1186
00:53:45,121 --> 00:53:47,057
THAT'S WHY I SHARED THE PICTURE

1187
00:53:47,123 --> 00:53:49,292
OF MY MOM YESTERDAY.

1188
00:53:49,359 --> 00:53:51,628
SHE WAS THE ONE THAT BLOCKED AND

1189
00:53:51,695 --> 00:53:55,565
TACKLE AND TOLD EVERYBODY IN THE

1190
00:53:55,632 --> 00:53:57,467
COMMUNITY MAKE SURE YOU TREAT

1191
00:53:57,534 --> 00:54:02,973
HER LIKE EVERY OTHER KID.

1192
00:54:03,039 --> 00:54:05,275
WHEN YOU TALK ABOUT THE IMPACT

1193
00:54:05,342 --> 00:54:06,843
OF THE SOCIAL DETERMINATES OF

1194
00:54:06,910 --> 00:54:10,947
HATH AND HOW IS THAT RECEIVED?

1195
00:54:11,014 --> 00:54:12,115
DO YOU FEEL IMPLEMENTATION OF A

1196
00:54:12,182 --> 00:54:13,416
SCALE LIKE THAT WOULD REQUIRE A

1197
00:54:13,483 --> 00:54:16,353
LOT OF EDUCATION AND CULTURE

1198
00:54:16,419 --> 00:54:19,589
CHANGE IN THE FIELD TO BE

1199
00:54:19,656 --> 00:54:20,023
SUCCESSFUL?

1200
00:54:20,090 --> 00:54:21,458
>> YOU'RE EXACTLY RIGHT ON.

1201
00:54:21,524 --> 00:54:22,859
YOU HIT THE NAIL ON THE HEAD.

1202
00:54:22,926 --> 00:54:27,030
I DON'T THINK THE SURGICAL AND

1203
00:54:27,097 --> 00:54:28,698
PROCEDURAL RELATED FIELDS ARE

1204
00:54:28,765 --> 00:54:30,266
READY FOR THAT.

1205
00:54:30,333 --> 00:54:32,435
THEY THINK WHEN ALL YOU'VE GOT

1206
00:54:32,502 --> 00:54:34,104
IS A HAMMER EVERYTHING LOOKS

1207
00:54:34,170 --> 00:54:35,138
LIKE A NAIL.

1208
00:54:35,205 --> 00:54:37,374
THE THINK WHAT THEY'RE DOING AND

1209
00:54:37,440 --> 00:54:39,976
HAVE AN INMATE BELIEF THAT WHAT

1210
00:54:40,043 --> 00:54:41,945
WE ARE DOING IS MAKING A

1211
00:54:42,012 --> 00:54:42,946
DIFFERENCE.

1212
00:54:43,013 --> 00:54:44,814
I'VE DONE PERFECT SURGICAL

1213
00:54:44,881 --> 00:54:46,316
PROCEDURES CHILDREN HAVE GONE

1214
00:54:46,383 --> 00:54:48,084
HOME TO A TOUGH ENVIRONMENT AND

1215
00:54:48,151 --> 00:54:49,486
WE THOUGHT WE SCREENED FOR THAT

1216
00:54:49,552 --> 00:54:53,890
AHEAD OF TIME BUT DIDN'T SCREEN

1217
00:54:53,957 --> 00:54:56,059
IN THE RIGHT WAY AND THOSE

1218
00:54:56,126 --> 00:54:58,128
CHILDREN GOT WORSE

1219
00:54:58,194 --> 00:54:58,528
POST-OPERATIVELY.

1220
00:54:58,595 --> 00:55:00,697
I FEEL LIKE IT'S MY MISSION TO

1221
00:55:00,764 --> 00:55:07,570
TWO IN THE PEDIATRIC, OTHER

1222
00:55:07,637 --> 00:55:08,271
PEDIATRIC COMMUNITY AND TALK

1223
00:55:08,338 --> 00:55:10,373
ABOUT BIAS AND I BRING UP THE

1224
00:55:10,440 --> 00:55:10,807
ISSUE EVERY TIME.

1225
00:55:10,874 --> 00:55:13,243
AND THERE ARE SNIPPETS IN

1226
00:55:13,309 --> 00:55:14,844
ORTHOPEDICS AS I SHOWED YOU IN

1227
00:55:14,911 --> 00:55:17,347
ADULT ORTHOPEDICS IT'S CATCHING

1228
00:55:17,414 --> 00:55:18,481
FIRE.

1229
00:55:18,548 --> 00:55:21,484
I'M CONTINUING TO TRY TO BRING

1230
00:55:21,551 --> 00:55:23,620
THAT INTO THE

1231
00:55:23,687 --> 00:55:24,721
PEDIATRIC/ORTHOPEDIC SPACE.

1232
00:55:24,788 --> 00:55:26,623
I THINK IT'S A BIT OF A

1233
00:55:26,690 --> 00:55:27,290
CHALLENGE NOW.

1234
00:55:27,357 --> 00:55:31,161
>> NOW FOR YOUR WORK.

1235
00:55:31,227 --> 00:55:31,494
>> THANK YOU.

1236
00:55:31,561 --> 00:55:35,665
RALPH.

1237
00:55:35,732 --> 00:55:38,835
>> FIRST OF ALL, THANKS.

1238
00:55:38,902 --> 00:55:40,203
A LOT OF IMPORTANT PERSPECTIVES.

1239
00:55:40,270 --> 00:55:45,475
I APPRECIATE YOU TALKING ABOUT

1240
00:55:45,542 --> 00:55:51,481
THE ARTFICIALITY AND IT MAY BE A

1241
00:55:51,548 --> 00:55:52,782
DELICATE BALANCE WHEN YOU DEAL

1242
00:55:52,849 --> 00:55:54,617
WITH ANXIOUS PARENTS TO TRY TO

1243
00:55:54,684 --> 00:55:57,320
NOT GET THEM TO BE OVER

1244
00:55:57,387 --> 00:55:59,055
PROTECTIVE AND GET THEM TO

1245
00:55:59,122 --> 00:56:01,024
CONTINUALLY MOTIVATE AND

1246
00:56:01,091 --> 00:56:01,891
CHALLENGE THEIR KIDS.

1247
00:56:01,958 --> 00:56:03,293
SO I WANT YOU TO TALK ABOUT THAT

1248
00:56:03,359 --> 00:56:05,595
AND HOW IMPORTANT IS IT THEY

1249
00:56:05,662 --> 00:56:08,832
HAVE SIBLINGS OR FRIENDS THAT

1250
00:56:08,898 --> 00:56:11,434
ALSO TAKE THEM OUT TO ATHLETIC

1251
00:56:11,501 --> 00:56:14,237
FIELDS AND ACTIVITIES AND THINGS

1252
00:56:14,304 --> 00:56:15,472
LIKE THAT AND HAVE THIS NOTION

1253
00:56:15,538 --> 00:56:19,542
YOU COULD CIRCLE BACK TO YOUR

1254
00:56:19,609 --> 00:56:21,077
NASA CAREER OUT IN ZERO G

1255
00:56:21,144 --> 00:56:25,348
ENVIRONMENT THESE FOLKS WOULD

1256
00:56:25,415 --> 00:56:26,316
HAVE AN ADVANTAGE.

1257
00:56:26,382 --> 00:56:27,851
I'M MORE IF THE FIRST TWO

1258
00:56:27,917 --> 00:56:28,151
QUESTIONS.

1259
00:56:28,218 --> 00:56:33,990
>> GREAT QUESTIONS, RALPH.

1260
00:56:34,057 --> 00:56:36,292
I THINK IT'S FASCINATING WHEN

1261
00:56:36,359 --> 00:56:37,427
YOU SEE HOW DIFFERENT FAMILIES

1262
00:56:37,494 --> 00:56:41,131
APPROACH THE DISABILITY.

1263
00:56:41,197 --> 00:56:48,905
SOME FAMILIES ARE LIKE INSURE

1264
00:56:48,972 --> 00:56:52,342
-- LIKE SHERRY'S WHO WILL PLOW

1265
00:56:52,408 --> 00:56:53,877
THE ROAD AND MAKE SURE THEIR

1266
00:56:53,943 --> 00:56:55,044
CHILDREN ARE INCLUDED AND HAVE

1267
00:56:55,111 --> 00:56:56,913
GREAT OPPORTUNITIES.

1268
00:56:56,980 --> 00:56:59,249
SOME FAMILIES STICK HER HEAD IN

1269
00:56:59,315 --> 00:57:00,917
THE SAND A LITTLE BIT AND ACT

1270
00:57:00,984 --> 00:57:03,820
LIKE MAYBE NOTHING'S WRONG AND

1271
00:57:03,887 --> 00:57:04,921
MAYBE THEIR CHILD IS JUST A

1272
00:57:04,988 --> 00:57:06,456
LITTLE BIT DIFFERENT WHICH IS

1273
00:57:06,523 --> 00:57:08,024
GREAT IN SOME WAYS BUT IF YOUR

1274
00:57:08,091 --> 00:57:11,995
NOT OUT THERE ADVOCATING AND

1275
00:57:12,061 --> 00:57:14,264
TRYING TO MAKE SURE YOU'RE

1276
00:57:14,330 --> 00:57:15,098
TAKING ADVANTAGE OF THE

1277
00:57:15,165 --> 00:57:15,865
ENVIRONMENT, YOU'RE PROBABLY

1278
00:57:15,932 --> 00:57:17,834
GOING TO LOSE OUT AND THAT

1279
00:57:17,901 --> 00:57:19,435
INCLUDES THERAPIES, INCLUDES

1280
00:57:19,502 --> 00:57:22,071
SEEING OTHER TYPES OF

1281
00:57:22,138 --> 00:57:23,907
PHYSICIANS, IT INCLUDES SOME

1282
00:57:23,973 --> 00:57:26,176
TECHNOLOGY PEPE MENTIONED.

1283
00:57:26,242 --> 00:57:28,912
STRIKING THAT BALANCE IS

1284
00:57:28,978 --> 00:57:29,612
INTERESTING.

1285
00:57:29,679 --> 00:57:33,449
I DO THINK THERE'S SO MUCH WE

1286
00:57:33,516 --> 00:57:37,120
CAN DO WITH THE PSYCHOSOCIAL

1287
00:57:37,187 --> 00:57:37,420
ASSESSMENT.

1288
00:57:37,487 --> 00:57:39,722
I THINK SOME FAMILIES ARE MORE

1289
00:57:39,789 --> 00:57:40,857
RECEPTIVE TO A HEAD ON

1290
00:57:40,924 --> 00:57:41,825
CONVERSATION ABOUT THAT AND SOME

1291
00:57:41,891 --> 00:57:47,397
ARE MORE RECEPTIVE TO SOMETHING

1292
00:57:47,463 --> 00:57:51,768
MORE SUBTLE.

1293
00:57:51,835 --> 00:57:53,837
YOUR LAST QUESTION IT'S BURNED

1294
00:57:53,903 --> 00:57:55,205
IN MY BRAIN.

1295
00:57:55,271 --> 00:57:57,640
I REALIZED I MISSED ANOTHER

1296
00:57:57,707 --> 00:57:58,775
THING I COULD CORRELATE NASA

1297
00:57:58,842 --> 00:58:02,011
WITH WHAT WITH WE DO.

1298
00:58:02,078 --> 00:58:06,416
WE DO A LOT OF COOL THERAPY.

1299
00:58:06,482 --> 00:58:07,884
BUOYANCY TYPE THINGS WHICH IS

1300
00:58:07,951 --> 00:58:09,819
HOW ASTRONAUTS TRAIN FOR SPACE

1301
00:58:09,886 --> 00:58:10,286
IN THE POOL.

1302
00:58:10,353 --> 00:58:12,388
IN THE REHAB PROGRAM WE DO A LOT

1303
00:58:12,455 --> 00:58:13,256
OF THAT.

1304
00:58:13,323 --> 00:58:15,558
IN FACT I WROTE A BIG LETTER

1305
00:58:15,625 --> 00:58:17,393
YESTERDAY MAKE SURE WE KEEP OUR

1306
00:58:17,460 --> 00:58:17,694
POOL OPEN.

1307
00:58:17,760 --> 00:58:19,929
THERE'S THE NEW TECHNOLOGY OF

1308
00:58:19,996 --> 00:58:27,904
THE ZERO G YOU HAVE A SUSPENSION

1309
00:58:27,971 --> 00:58:32,475
SYSTEM TO DIAL IN WEIGHT BEARING

1310
00:58:32,542 --> 00:58:32,876
POST-OPERATIVELY.

1311
00:58:32,942 --> 00:58:33,910
WE DO THAT.

1312
00:58:33,977 --> 00:58:35,845
I MISSED A COUPLE OPPORTUNITIES

1313
00:58:35,912 --> 00:58:39,749
TO TRY TO BRING IN THE ZERO G

1314
00:58:39,816 --> 00:58:40,984
THING AND WHAT WAS THE MIDDLE

1315
00:58:41,050 --> 00:58:42,919
QUESTION.

1316
00:58:42,986 --> 00:58:44,120
SORRY, I GOT LOST.

1317
00:58:44,187 --> 00:58:46,689
>> I WAS ASKING HOW MUCH IT

1318
00:58:46,756 --> 00:58:48,958
HELPS TO HAVE SIBS.

1319
00:58:49,025 --> 00:58:52,061
>> SIBLINGS IS IMPORTANT.

1320
00:58:52,128 --> 00:58:59,602
MY DAUGHTER WOULD KILL ME.

1321
00:58:59,669 --> 00:59:02,205
THE SIBLING TRAJECTORY IS

1322
00:59:02,272 --> 00:59:02,505
INTERESTING.

1323
00:59:02,572 --> 00:59:04,607
MOST HAVE ALSO STRONG COMPONENTS

1324
00:59:04,674 --> 00:59:05,608
OF THE FAMILY.

1325
00:59:05,675 --> 00:59:08,611
MY DAUGHTER HAS GONE ON TO BE A

1326
00:59:08,678 --> 00:59:09,879
PEDIATRIC OCCUPATIONAL

1327
00:59:09,946 --> 00:59:10,580
THERAPIST.

1328
00:59:10,647 --> 00:59:12,916
SHE'S IN A SCHOOL FOR CHILDREN

1329
00:59:12,982 --> 00:59:14,150
WITH CEREBRAL PALSY.

1330
00:59:14,217 --> 00:59:15,818
SHE LAUNCHED SIBLING GROUPS AN

1331
00:59:15,885 --> 00:59:19,522
WROTE THE SIBLING CHAPTER IN

1332
00:59:19,589 --> 00:59:21,391
FREEMAN'S LAST BOOK.

1333
00:59:21,457 --> 00:59:23,226
FOR HER, HER LIFE HAS ALWAYS

1334
00:59:23,293 --> 00:59:29,532
BEEN AROUND CP AND IN A WAY WE

1335
00:59:29,599 --> 00:59:30,967
ALSO TALKED A LITTLE BIT ABOUT

1336
00:59:31,034 --> 00:59:32,635
HOW IT WAS HER OWN DISABILITY

1337
00:59:32,702 --> 00:59:34,070
BECAUSE SHE SACRIFICED SOME

1338
00:59:34,137 --> 00:59:36,306
THINGS BECAUSE SHE WAS IN

1339
00:59:36,372 --> 00:59:37,040
THERAPY WITH THE BOYS BECAUSE

1340
00:59:37,106 --> 00:59:38,741
SHE HAD TO GO ALONG.

1341
00:59:38,808 --> 00:59:42,011
I THINK A HEALTHY SIBLING

1342
00:59:42,078 --> 00:59:42,879
RELATIONSHIP IS INCREDIBLY

1343
00:59:42,946 --> 00:59:43,146
IMPORTANT.

1344
00:59:43,212 --> 00:59:45,848
AS YOU SAID TO BRING IN THE KIDS

1345
00:59:45,915 --> 00:59:47,884
ON TO MORE NORMATIVE CHILDHOOD

1346
00:59:47,951 --> 00:59:49,719
AND ADOLESCENT EXPERIENCES AND

1347
00:59:49,786 --> 00:59:51,721
WE HAVE A SIBLING ASSESSMENT AS

1348
00:59:51,788 --> 00:59:53,423
PART OF THAT CP PAT AND I THINK

1349
00:59:53,489 --> 00:59:54,223
WE'LL ABLE TO DIG NA THAT AS

1350
00:59:54,290 --> 00:59:58,328
WELL.

1351
00:59:58,394 --> 01:00:00,029
DIG INTO THAT AS WELL.

1352
01:00:00,096 --> 01:00:03,499
>> THANK YOU, WADE FOR A MOVING

1353
01:00:03,566 --> 01:00:05,735
PRESENTATION AND DIALOGUE.

1354
01:00:05,802 --> 01:00:07,170
RALPH, I THINK WE'LL TURN IT

1355
01:00:07,236 --> 01:00:16,112
BACK OVER TO YOU AT THIS POINT.

1356
01:00:16,179 --> 01:00:18,915
>> I'LL INTRODUCE THE NEXT

1357
01:00:18,982 --> 01:00:20,249
SECTION.

1358
01:00:20,316 --> 01:00:22,719
MY NICHD COLLEAGUE AMANDA ALISE

1359
01:00:22,785 --> 01:00:25,555
PRICE AND I HAVE TO USE HER

1360
01:00:25,621 --> 01:00:29,659
MIDDLE NAME BECAUSE WE HAD

1361
01:00:29,726 --> 01:00:30,226
ANOTHER AMANDA PRICE.

1362
01:00:30,293 --> 01:00:33,930
SHE BECAME THE DIRECTOR OF THE

1363
01:00:33,997 --> 01:00:37,734
OFFICE OF HEALTH EQUITY AS WELL

1364
01:00:37,800 --> 01:00:43,873
AS AN NICHD CHIEF SCIENTIFIC

1365
01:00:43,940 --> 01:00:47,310
DIVERSITY IN APRIL OF '23 AND

1366
01:00:47,377 --> 01:00:49,379
LEADS THE EFFORT TO SHAPE THE

1367
01:00:49,445 --> 01:00:51,247
INSTITUTE'S VISION FOR

1368
01:00:51,314 --> 01:00:56,019
DIVERSITY, EQUITY AND ,

1369
01:00:56,085 --> 01:00:59,389
INCLUSION AND ACCESSIBILITY AND

1370
01:00:59,455 --> 01:01:00,857
LEADS STRATEGY TO ENRICH

1371
01:01:00,923 --> 01:01:02,525
INCLUSION AND ACHIEVE EQUITY

1372
01:01:02,592 --> 01:01:05,895
WHICH WE MORPHED INTO STRIVE.

1373
01:01:05,962 --> 01:01:07,096
THE STRIVE INITIATIVE YOU HEARD

1374
01:01:07,163 --> 01:01:08,364
ABOUT IN SOME PREVIOUS MEETINGS

1375
01:01:08,431 --> 01:01:11,501
AND GUIDING IT INTO AN

1376
01:01:11,567 --> 01:01:14,337
IMPLEMENTATION FOLLOWING THE

1377
01:01:14,404 --> 01:01:16,339
FINALIZATION OF OUR STRIVE

1378
01:01:16,406 --> 01:01:17,974
ACTION PLAN AND PROVIDES US WITH

1379
01:01:18,041 --> 01:01:23,112
GUIDANCE AND SERVES AS OUR

1380
01:01:23,179 --> 01:01:24,714
AUTHORITY ON HEALTH EQUITY

1381
01:01:24,781 --> 01:01:26,549
RESEARCH ON THE EXTRAMURAL AND

1382
01:01:26,616 --> 01:01:28,551
INTRAMURAL PROGRAMS AND HER

1383
01:01:28,618 --> 01:01:29,986
PREVIOUS WORK FOCUSSED ON

1384
01:01:30,053 --> 01:01:32,121
HEALTHY LIFESTYLE BEHAVIORS AND

1385
01:01:32,188 --> 01:01:33,656
HAS A Ph.D. IN EXERCISE SCIENCE

1386
01:01:33,723 --> 01:01:34,957
AND WE APPRECIATE HER COMING

1387
01:01:35,024 --> 01:01:36,893
HERE AND GIVING US UPDATE ON HER

1388
01:01:36,959 --> 01:01:38,795
OFFICE AND CHALLENGE AND HER

1389
01:01:38,861 --> 01:01:39,695
VISION AND SO ON.

1390
01:01:39,762 --> 01:01:44,067
AMANDA.

1391
01:01:44,133 --> 01:01:47,437
>> THANK YOU FOR THE

1392
01:01:47,503 --> 01:01:48,304
INTRODUCTION, RALPH.

1393
01:01:48,371 --> 01:01:51,307
I WANT TO HIGHLIGHT I'M AN

1394
01:01:51,374 --> 01:01:53,009
EXERCISE PHYSIOLOGIST BY

1395
01:01:53,076 --> 01:01:54,043
TRAINING AND SHARE THE PASSION

1396
01:01:54,110 --> 01:01:56,712
AND UNDERSTAND THE VALUE OF

1397
01:01:56,779 --> 01:01:58,247
REHABILITATIVE MEDICINE.

1398
01:01:58,314 --> 01:02:01,951
THANK YOU FOR HAVING ME HERE.

1399
01:02:02,018 --> 01:02:03,786
I'M GOING TO GIVE YOU AN

1400
01:02:03,853 --> 01:02:05,755
OVERVIEW OF THE OFFICE OF HEALTH

1401
01:02:05,822 --> 01:02:08,024
EQUITY AND TALK ABOUT OUR

1402
01:02:08,091 --> 01:02:09,892
MISSION PRIORITIES AS WELL AS

1403
01:02:09,959 --> 01:02:10,159
ACTIVITY.

1404
01:02:10,226 --> 01:02:14,163
I'M GOING TO HIGHLIGHT A FEW OF

1405
01:02:14,230 --> 01:02:16,032
OUR DIVERSITY, EQUITY, INCLUSION

1406
01:02:16,099 --> 01:02:17,066
AND ACCESSIBILITY ACTIVITIES AT

1407
01:02:17,133 --> 01:02:25,141
NICHD.

1408
01:02:25,208 --> 01:02:26,709
AS WELL AS EFFORTS AND

1409
01:02:26,776 --> 01:02:27,009
ENGAGEMENT.

1410
01:02:27,076 --> 01:02:28,578
WE'LL START WITH THE MISSION OF

1411
01:02:28,644 --> 01:02:30,079
OFFICE OF HEALTH EQUITY TO SERVE

1412
01:02:30,146 --> 01:02:32,115
AS A CATALYST TO STRENGTHEN THE

1413
01:02:32,181 --> 01:02:33,850
INSTITUTE'S COMMITMENT TO

1414
01:02:33,916 --> 01:02:34,984
ENSURING THE HEALTH AND WELL

1415
01:02:35,051 --> 01:02:37,086
BEING OF ALL CHILDREN, ADULTS,

1416
01:02:37,153 --> 01:02:39,622
FAMILIES AND COMMUNITIES.

1417
01:02:39,689 --> 01:02:43,059
WE FOCUS ON THREE MAIN AIMS YOU

1418
01:02:43,126 --> 01:02:47,296
CAN SEE ON THE GEARS ON THE LEFT

1419
01:02:47,363 --> 01:02:50,199
THOSE ARE TO ADVANCE DIVERSITY,

1420
01:02:50,266 --> 01:02:51,134
EQUITY AND INCLUSION AND ACCESS

1421
01:02:51,200 --> 01:02:55,304
ACT IN THE WORK WE DO AT NICHD

1422
01:02:55,371 --> 01:02:57,707
AND THAT PERTAINS TO THE IN

1423
01:02:57,773 --> 01:02:58,574
PERSONAL WORKFORCE AS WELL AS

1424
01:02:58,641 --> 01:03:01,010
WHAT I CALL THE INTERNAL

1425
01:03:01,077 --> 01:03:03,946
WORKINGS OF THE INSTITUTE.

1426
01:03:04,013 --> 01:03:06,949
SO OUR ACTIVITIES PROGRAMS

1427
01:03:07,016 --> 01:03:10,620
INITIATIVES POLICIES AND SO ON.

1428
01:03:10,686 --> 01:03:14,857
WE ALSO LOOK IN OUR SCIENTIFIC

1429
01:03:14,924 --> 01:03:17,493
WORKFORCE DIVERSITY AND WORK

1430
01:03:17,560 --> 01:03:19,195
WITH THE EXTRAMURAL AND

1431
01:03:19,262 --> 01:03:20,096
INTRAMURAL DIVISION ON THAT AS

1432
01:03:20,163 --> 01:03:22,732
WELL AS THINKING ABOUT OUR

1433
01:03:22,798 --> 01:03:23,866
INTERNAL WORKFORCE.

1434
01:03:23,933 --> 01:03:26,169
WE ALSO DIRECT HEALTH

1435
01:03:26,235 --> 01:03:26,836
DISPARITIES IN HEALTH EQUITY

1436
01:03:26,903 --> 01:03:30,806
RESEARCH AT THE INSTITUTE.

1437
01:03:30,873 --> 01:03:33,843
OUR WEBSITES ARE THERE ON THE

1438
01:03:33,910 --> 01:03:34,944
BOTTOM RIGHT.

1439
01:03:35,011 --> 01:03:38,414
AND WE ARE WORKING ON A NEW

1440
01:03:38,481 --> 01:03:42,618
WEBSITE LANDING PAGE THAT'S

1441
01:03:42,685 --> 01:03:44,053
GOING TO BE CALLED RESEARCH TO

1442
01:03:44,120 --> 01:03:50,026
SUPPORT OUR EFFORTS AS WELL.

1443
01:03:50,092 --> 01:03:51,594
I'VE BEEN BUSY OVER THE PAST

1444
01:03:51,661 --> 01:03:51,894
YEAR.

1445
01:03:51,961 --> 01:03:53,329
IT STARTED WITH JUST ME LAST

1446
01:03:53,396 --> 01:03:56,299
APRIL AND I'VE BEEN ABLE TO

1447
01:03:56,365 --> 01:04:00,536
BRING ON SEVERAL LOVELY TEAM

1448
01:04:00,603 --> 01:04:01,571
MEMBERS.

1449
01:04:01,637 --> 01:04:08,077
OUR STRUCTURE IS TO HAVE AN

1450
01:04:08,144 --> 01:04:09,679
EXTRAMURAL AND INTRAMURAL

1451
01:04:09,745 --> 01:04:11,247
LIAISON AND THEY SUPPORT DIRECT

1452
01:04:11,314 --> 01:04:13,282
OUTREACH AND ENGAGEMENT AS WELL

1453
01:04:13,349 --> 01:04:13,749
AS INTERNAL WORKFORCE

1454
01:04:13,816 --> 01:04:17,753
DEVELOPMENT.

1455
01:04:17,820 --> 01:04:19,488
WE ALSO HAVE A PROGRAM ANALYST

1456
01:04:19,555 --> 01:04:20,623
WE'RE HIRING TO SUPPORT

1457
01:04:20,690 --> 01:04:21,457
ACTIVITIES ACROSS THE BOARD.

1458
01:04:21,524 --> 01:04:24,026
WE HAVE THE PLEASURE OF WORKING

1459
01:04:24,093 --> 01:04:25,895
WITH TRAINEES AND FELLOWS AND

1460
01:04:25,962 --> 01:04:28,297
STUDENTS IN OUR OFFICE THAT

1461
01:04:28,364 --> 01:04:32,034
ALLOWS US TO DIRECTLY SUPPORT

1462
01:04:32,101 --> 01:04:37,707
DIVERSITY IN ADDITION TO OUR

1463
01:04:37,773 --> 01:04:40,042
BROADER NICHD INITIATIVES AND

1464
01:04:40,109 --> 01:04:41,544
HAVE CONTRACT SUPPORT THAT

1465
01:04:41,611 --> 01:04:43,779
SUPPORT OUR OFFICE AND WORK WITH

1466
01:04:43,846 --> 01:04:47,650
OUR COUNCIL WHICH IS A GROUP OF

1467
01:04:47,717 --> 01:04:50,886
EMPLOYEES ACROSS NICHD THAT HELP

1468
01:04:50,953 --> 01:04:52,755
US IMPLEMENT OUR ACTIVITIES AND

1469
01:04:52,822 --> 01:04:55,625
GOALS AND ENSURE THE VOICE OF

1470
01:04:55,691 --> 01:04:58,461
THE STAFF HERE AT NICHD IS

1471
01:04:58,527 --> 01:04:59,061
INCORPORATED IN EVERYTHING WE

1472
01:04:59,128 --> 01:05:05,968
DO.

1473
01:05:06,035 --> 01:05:11,540
RALPH MENTIONED THE STRIVE

1474
01:05:11,607 --> 01:05:11,774
PROGRAM.

1475
01:05:11,841 --> 01:05:16,245
IT EXIST ED TO 2023 AND

1476
01:05:16,312 --> 01:05:17,213
CULMINATED IN THE STRIVE ACTION

1477
01:05:17,280 --> 01:05:17,747
PLAN.

1478
01:05:17,813 --> 01:05:21,083
IT WAS A GROUP OF APPROXIMATELY

1479
01:05:21,150 --> 01:05:25,354
60 EMPLOYEES SPLIT BETWEEN THE

1480
01:05:25,421 --> 01:05:28,024
DEIA COMMITTEE, SCIENTIFIC

1481
01:05:28,090 --> 01:05:31,727
WORKFORCE DIVERSITY COMMITTEE

1482
01:05:31,794 --> 01:05:34,997
AND DEVELOPED GOALS TO SHAPE THE

1483
01:05:35,064 --> 01:05:36,932
PRIORITIES OF OUR OFFICE AND THE

1484
01:05:36,999 --> 01:05:39,168
STRIVE ACTION PLAN IS AN OVER40

1485
01:05:39,235 --> 01:05:41,671
PAGE DOCUMENT WITH PLENTY OF

1486
01:05:41,737 --> 01:05:43,272
GOALS, ACTIVITIES AND METRICS

1487
01:05:43,339 --> 01:05:46,108
FOR US TO WORK ON AS AN

1488
01:05:46,175 --> 01:05:47,476
INSTITUTE UNDER THE DIRECTION OF

1489
01:05:47,543 --> 01:05:52,448
THE OFFICE OF HEALTH EQUITY.

1490
01:05:52,515 --> 01:05:55,451
THE STRIVE PROGRAM WAS ALSO WHAT

1491
01:05:55,518 --> 01:05:57,486
PROVIDED THE SUPPORT FOR HIRING

1492
01:05:57,553 --> 01:06:01,057
A CHIEF SCIENTIFIC DIVERSITY

1493
01:06:01,123 --> 01:06:02,458
OFFICER AND ESTABLISHING THE

1494
01:06:02,525 --> 01:06:03,359
OFFICE OF HEALTH EQUITY IN THE

1495
01:06:03,426 --> 01:06:08,831
FORM IT IS NOW.

1496
01:06:08,898 --> 01:06:11,367
I'LL GIVE YOU AN OVERVIEW OF THE

1497
01:06:11,434 --> 01:06:14,503
ACTIVITIES OF THE OFFICE OF

1498
01:06:14,570 --> 01:06:15,071
HEALTH EQUITY.

1499
01:06:15,137 --> 01:06:16,806
WE FOCUSSED ON THREE MAIN

1500
01:06:16,872 --> 01:06:20,810
BUCKETS OF WORKING WITH OUR

1501
01:06:20,876 --> 01:06:21,510
EXTRAMURAL DIVISION AND

1502
01:06:21,577 --> 01:06:23,579
INTRAMURAL DIVISION AS WELL AS

1503
01:06:23,646 --> 01:06:24,747
OUR INTERNAL WORKFORCE.

1504
01:06:24,814 --> 01:06:30,152
WE HAVE A SHARED PRIORITY OF

1505
01:06:30,219 --> 01:06:31,253
OUTREACH AND ENGAGEMENT ACROSS

1506
01:06:31,320 --> 01:06:32,722
ALL THE WORK THEY DO AND THINK

1507
01:06:32,788 --> 01:06:34,457
OF HOW TO GET A GREATER NUMBER

1508
01:06:34,523 --> 01:06:36,025
OF STAFF AND EMPLOYEES ENGAGED

1509
01:06:36,092 --> 01:06:38,394
IN THE WORK WE DO.

1510
01:06:38,461 --> 01:06:39,862
HOW CAN WE INCREASE THE

1511
01:06:39,929 --> 01:06:43,532
AWARENESS AND PARTICIPATION IN

1512
01:06:43,599 --> 01:06:44,700
OUR OPPORTUNITIES BY THE

1513
01:06:44,767 --> 01:06:46,669
EXTRAMURAL COMMUNITY AND THE

1514
01:06:46,736 --> 01:06:47,803
GREATER SCIENTIFIC COMMUNITY AND

1515
01:06:47,870 --> 01:06:50,406
ALSO HOW CAN WE THINK ABOUT

1516
01:06:50,473 --> 01:06:53,242
EXPANDING THE WORK WE DO IN THE

1517
01:06:53,309 --> 01:06:54,877
INTRAMURAL SIDE AND THE TRAINEES

1518
01:06:54,944 --> 01:06:56,245
WE BRING IN ON THE INTRAMURAL

1519
01:06:56,312 --> 01:07:02,151
SIDE.

1520
01:07:02,218 --> 01:07:04,620
TO GIVE YOU A FEW EXAMPLES OF

1521
01:07:04,687 --> 01:07:08,190
THE WORK WE'RE DOING ON THE

1522
01:07:08,257 --> 01:07:08,691
EXTRAMURAL SIDE.

1523
01:07:08,758 --> 01:07:18,367
WE HOLD REGULAR MEETINGS WITH

1524
01:07:18,434 --> 01:07:20,403
EXTRAMURAL LEADERSHIP AND

1525
01:07:20,469 --> 01:07:27,376
ACTIVITIES AND WE WORK TO

1526
01:07:27,443 --> 01:07:30,045
STRATEGIZE HOW BEST TO SUPPORT

1527
01:07:30,112 --> 01:07:31,347
THE SCIENTIFIC WORKFORCE

1528
01:07:31,414 --> 01:07:33,048
PARTICULARLY ACROSS OUR

1529
01:07:33,115 --> 01:07:33,749
EXTRAMURAL PROGRAMS.

1530
01:07:33,816 --> 01:07:37,620
WE HAVE MOST RECENTLY BEEN

1531
01:07:37,686 --> 01:07:40,556
WORKING ON A SIGN ON AND

1532
01:07:40,623 --> 01:07:42,124
MANAGEMENT PROCESS.

1533
01:07:42,191 --> 01:07:44,960
THERE'S FUNDING OPPORTUNITIES

1534
01:07:45,027 --> 01:07:47,530
THAT FOCUS ON HEALTH REQUEST AND

1535
01:07:47,596 --> 01:07:48,264
DIVERSITY AND RESOURCE

1536
01:07:48,330 --> 01:07:49,365
INFRASTRUCTURE MORE BROADLY.

1537
01:07:49,432 --> 01:07:51,934
WE'VE ALSO BEEN WORKING WITH OUR

1538
01:07:52,001 --> 01:07:53,936
DIVERSITY WORKING GROUP AS WELL

1539
01:07:54,003 --> 01:07:55,638
AS THE OFFICE OF EXTRAMURAL

1540
01:07:55,704 --> 01:07:58,941
POLICY TO BETTER SUPPORT OUR

1541
01:07:59,008 --> 01:07:59,642
DIVERSITY SUPPLEMENT SCHOLARS

1542
01:07:59,708 --> 01:08:03,212
AND HAVE BEEN WORKING WITH OUR

1543
01:08:03,279 --> 01:08:05,614
NEWLY FORMED OFFICE OF CLINICAL

1544
01:08:05,681 --> 01:08:07,416
RESEARCH TO PARTNER ON

1545
01:08:07,483 --> 01:08:09,418
RESOURCES, BEST PRACTICES AND

1546
01:08:09,485 --> 01:08:10,486
GUIDANCE RELATED TO ENGAGEMENT

1547
01:08:10,553 --> 01:08:13,122
AND UNCOLLUSION IN RESEARCH.

1548
01:08:13,189 --> 01:08:19,395
-- AND INCLUSION ON RESEARCH.

1549
01:08:19,462 --> 01:08:21,497
TO GIVE YOU A LITTLE MORE DETAIL

1550
01:08:21,564 --> 01:08:22,765
WITH THE OFFICE OF EXTRAMURAL

1551
01:08:22,832 --> 01:08:25,668
POLICY AS IT RELATES TO OUR

1552
01:08:25,734 --> 01:08:27,136
DIVERSITY SUPPLEMENT PROGRAM, WE

1553
01:08:27,203 --> 01:08:30,940
ARE WORKING ON CREATING AN

1554
01:08:31,006 --> 01:08:33,209
ONBOARDING WORKSHOP TO LEVEL THE

1555
01:08:33,275 --> 01:08:36,312
PLAYING FIELD OR LEVEL THE START

1556
01:08:36,378 --> 01:08:39,181
IS FOR ALL OF OUR RECIPIENTS SO

1557
01:08:39,248 --> 01:08:42,451
THAT THEY ARE AWARE OF THE

1558
01:08:42,518 --> 01:08:43,986
RESOURCES WE HAVE AT NICHD.

1559
01:08:44,053 --> 01:08:46,689
THEY ARE SET UP FOR SUCCESS IN

1560
01:08:46,755 --> 01:08:49,825
THEIR MENTORING PLANS AND

1561
01:08:49,892 --> 01:08:51,961
INDIVIDUAL DEVELOPMENT PLANS,

1562
01:08:52,027 --> 01:08:57,533
THEY WILL -- ARE THINKING WHAT

1563
01:08:57,600 --> 01:09:01,370
ARE THE NEXT STEPS AND LOOKING

1564
01:09:01,437 --> 01:09:02,371
TO HOST OPEN OFFICE HOURS TO

1565
01:09:02,438 --> 01:09:04,073
ALLOW PEOPLE TO DROP IN AND ASK

1566
01:09:04,139 --> 01:09:06,041
QUESTIONS AT ANY TIME.

1567
01:09:06,108 --> 01:09:08,911
WE'RE ALSO LOOKING TO DO LONG

1568
01:09:08,978 --> 01:09:11,313
TERM TRACKING OF OUR DIVERSITY

1569
01:09:11,380 --> 01:09:13,983
SUPPLEMENT PROGRAM RECIPIENTS TO

1570
01:09:14,049 --> 01:09:15,584
INFORM THE PROGRAMS WE

1571
01:09:15,651 --> 01:09:18,387
PARTICIPATE AND ENSURE WE ARE

1572
01:09:18,454 --> 01:09:20,556
SUPPORTING OUR EXTRAMURAL

1573
01:09:20,623 --> 01:09:22,291
WORKFORCE IN THE WAYS THAT SUIT

1574
01:09:22,358 --> 01:09:26,795
THEM AS WELL AS US.

1575
01:09:26,862 --> 01:09:29,765
WE ARE ALSO WE STRADDLE THE LINE

1576
01:09:29,832 --> 01:09:31,367
BETWEEN SUPPORTING PEOPLE

1577
01:09:31,433 --> 01:09:31,967
EXTERNAL TO THE INSTITUTE AS

1578
01:09:32,034 --> 01:09:33,469
WELL AS INTERNALLY.

1579
01:09:33,536 --> 01:09:36,739
WE'RE ALSO WORKING ON MATERIALS

1580
01:09:36,805 --> 01:09:40,342
FOR OUR PROGRAM OFFICERS TO BE

1581
01:09:40,409 --> 01:09:41,443
ABLE TO SUPPORT THIS PROGRAM AND

1582
01:09:41,510 --> 01:09:46,582
MAKE IT EASIER FOR THEM TO

1583
01:09:46,649 --> 01:09:49,585
PARTICIPATE IN ADDITION TO

1584
01:09:49,652 --> 01:09:51,520
WORKING ON A COMMUNICATION

1585
01:09:51,587 --> 01:09:54,423
STRATEGY THAT GETS THE WORD OUT

1586
01:09:54,490 --> 01:09:55,057
ABOUT THE DIVERSITY SUPPLEMENT

1587
01:09:55,124 --> 01:10:02,331
PROGRAM.

1588
01:10:02,398 --> 01:10:04,199
WE'RE ALSO WORKING WITH OUR

1589
01:10:04,266 --> 01:10:07,036
OFFICE OF CLINICAL RESEARCH TO

1590
01:10:07,102 --> 01:10:11,173
PARTNER WITH THEM TO DEVELOP

1591
01:10:11,240 --> 01:10:16,845
THINGS LIKE NOFO LANGUAGE IN

1592
01:10:16,912 --> 01:10:18,847
ORDER TO EXPRESS OUR INTEREST IN

1593
01:10:18,914 --> 01:10:21,584
INCLUDING PATIENT AND COMMUNITY

1594
01:10:21,650 --> 01:10:22,751
ENGAGEMENT AND INCREASING

1595
01:10:22,818 --> 01:10:23,319
REPRESENTATION IN RESEARCH

1596
01:10:23,385 --> 01:10:27,356
STUDY.

1597
01:10:27,423 --> 01:10:30,125
ALSO TO IDENTIFY BEST PRACTICES

1598
01:10:30,192 --> 01:10:32,628
FOR SUPPORTING ENGAGEMENT IN

1599
01:10:32,695 --> 01:10:32,895
RESEARCH.

1600
01:10:32,962 --> 01:10:34,229
IN MANY CASES PEOPLE WANT TO BE

1601
01:10:34,296 --> 01:10:39,001
MORE ENGAGING AND INCLUSIVE IN

1602
01:10:39,068 --> 01:10:41,303
THE RESEARCH BUT WE WANT TO MAKE

1603
01:10:41,370 --> 01:10:42,304
THIS EASIER.

1604
01:10:42,371 --> 01:10:46,275
WE ALSO ARE WORKING ON

1605
01:10:46,342 --> 01:10:46,942
DISSEMINATION AND IMPLEMENTATION

1606
01:10:47,009 --> 01:10:49,878
PLAN FOR SHARING THESE RESOURCES

1607
01:10:49,945 --> 01:10:53,716
AND THIS IS ANOTHER THING THAT

1608
01:10:53,782 --> 01:10:54,416
CROSSES EXTRAMURAL AND

1609
01:10:54,483 --> 01:10:57,052
INTRAMURAL BECAUSE WE CAN

1610
01:10:57,119 --> 01:11:07,630
SUPPORT OUR EXTRAMURAL P.I.s.

1611
01:11:10,899 --> 01:11:15,304
THAT'S A GOOD SEGUE TO OUR WORK

1612
01:11:15,371 --> 01:11:15,904
WITH INTRAMURAL DIVISION.

1613
01:11:15,971 --> 01:11:19,308
WE HAVE REGULAR MEETINGS WITH

1614
01:11:19,375 --> 01:11:21,143
INTRAMURAL LEADERSHIP INCLUDING

1615
01:11:21,210 --> 01:11:22,811
THE OFFICE OF THE SCIENTIFIC

1616
01:11:22,878 --> 01:11:24,446
DIRECTOR AS WELL AS THE OFFICE

1617
01:11:24,513 --> 01:11:29,718
OF THE CLINICAL DIRECTOR.

1618
01:11:29,785 --> 01:11:32,021
WE W

1619
01:11:32,087 --> 01:11:33,689
WE WERE RECENTLY ABLE IT GET

1620
01:11:33,756 --> 01:11:35,658
FUNDING FOR ESTABLISHING A

1621
01:11:35,724 --> 01:11:36,525
SUMMER RESEARCH PROGRAM IN

1622
01:11:36,592 --> 01:11:37,493
HEALTH DISPARITIES AND HEALTH

1623
01:11:37,559 --> 01:11:47,836
EQUITY RESEARCH.

1624
01:11:57,846 --> 01:11:59,748
WE WORKED OFFICE TO SUPPORT

1625
01:11:59,815 --> 01:12:07,456
EFFORTS.

1626
01:12:07,523 --> 01:12:17,933
IS WE ALSO WORK ON THE

1627
01:12:18,901 --> 01:12:23,238
EXTRAMURAL SIDE AND FACILITATING

1628
01:12:23,305 --> 01:12:24,973
INFORMATION SESSION WITH PROGRAM

1629
01:12:25,040 --> 01:12:29,278
OFFICERS AND SCIENTIFIC REVIEW

1630
01:12:29,344 --> 01:12:34,983
OFFICERS FOR  THE INTRAMURAL

1631
01:12:35,050 --> 01:12:37,119
TRAINEES SO THEY UNDERSTAND THE

1632
01:12:37,186 --> 01:12:42,691
PROCESS WHEN THEY JOIN THE

1633
01:12:42,758 --> 01:12:45,327
COMMUNITY.

1634
01:12:45,394 --> 01:12:47,096
WE WORK ON SUPPORTING THE

1635
01:12:47,162 --> 01:12:47,796
WORKFORCE AND COLLABORATE ACROSS

1636
01:12:47,863 --> 01:12:48,897
THE OFFICE OF THE DIRECTOR.

1637
01:12:48,964 --> 01:12:52,234
WE FOCUS ON HOW TO SUPPORT

1638
01:12:52,301 --> 01:12:55,037
WORKPLACE CULTURE AND PROVIDE

1639
01:12:55,104 --> 01:12:57,306
RESOURCES TO OUR STAFF AND

1640
01:12:57,372 --> 01:12:58,307
PARTICULARLY ON SHARING

1641
01:12:58,373 --> 01:13:00,342
OPPORTUNITIES FOR ADVANCEMENT

1642
01:13:00,409 --> 01:13:01,744
AND PROFESSIONAL DEVELOPMENT

1643
01:13:01,810 --> 01:13:04,279
PROVIDING RESOURCES FOR

1644
01:13:04,346 --> 01:13:05,581
EMPLOYEES AND SUPERVISORS AND

1645
01:13:05,647 --> 01:13:07,683
FOSTERING A WELCOMING AND

1646
01:13:07,750 --> 01:13:11,520
INCLUSIVE WORKPLACE.

1647
01:13:11,587 --> 01:13:13,021
WE ALSO SUPPORT RETENTION AND

1648
01:13:13,088 --> 01:13:15,190
HIRING PRACTICES.

1649
01:13:15,257 --> 01:13:17,226
WE WANT TO INCREASE RECRUITMENT

1650
01:13:17,292 --> 01:13:19,962
EFFORTS TO SUPPORT DIVERSITY IN

1651
01:13:20,028 --> 01:13:22,765
OUR INTERNAL WORKFORCE.

1652
01:13:22,831 --> 01:13:25,334
WE WANT TO USE INCLUSIVE AND

1653
01:13:25,400 --> 01:13:26,869
EQUITABLE HIRING PRACTICES AND

1654
01:13:26,935 --> 01:13:28,070
THAT WE'RE ALSO THINKING ABOUT

1655
01:13:28,137 --> 01:13:32,674
RETENTION.

1656
01:13:32,741 --> 01:13:34,777
WE ALSO COLLABORATE WITH THE

1657
01:13:34,843 --> 01:13:36,845
OFFICE OF ADMINISTRATIVE

1658
01:13:36,912 --> 01:13:38,547
MANAGEMENT IN PARTICULAR TO

1659
01:13:38,614 --> 01:13:42,818
DEVELOP TRAININGS AND EXAMPLE

1660
01:13:42,885 --> 01:13:45,287
ARE MICROAGGRESSION BYSTANDER

1661
01:13:45,354 --> 01:13:46,655
TRAINING AND WE'VE BEEN DOING A

1662
01:13:46,722 --> 01:13:51,927
SERIES WITH TOPICS THAT ARE

1663
01:13:51,994 --> 01:13:53,328
FOCUSSED ON OUR INTERNAL

1664
01:13:53,395 --> 01:13:54,963
WORKFORCE.

1665
01:13:55,030 --> 01:13:57,933
THE FIRST SET OF TOPICS FOCUS ON

1666
01:13:58,000 --> 01:13:59,535
THE SECOND AREA AROUND

1667
01:13:59,601 --> 01:14:03,539
RECRUITMENT, RETENTION AND

1668
01:14:03,605 --> 01:14:04,006
HIRING.

1669
01:14:04,072 --> 01:14:06,942
AND FOR SUPERVISORS TO BE USE

1670
01:14:07,009 --> 01:14:08,110
MORE INCLUSIVE AND EQUITABLE

1671
01:14:08,177 --> 01:14:09,578
HIRING PRACTICES.

1672
01:14:09,645 --> 01:14:14,716
IT'S AIMED AT GIVING STRATEGIES

1673
01:14:14,783 --> 01:14:17,920
AND TOOLS FOR SUPERVISORS AND

1674
01:14:17,986 --> 01:14:24,793
ULTIMATELY EMPLOYEES TO BE ABLE

1675
01:14:24,860 --> 01:14:28,564
TO INCORPORATE DEI IDEALS IN THE

1676
01:14:28,630 --> 01:14:30,432
WORK THEY DO.

1677
01:14:30,499 --> 01:14:32,134
I WANT TO TALK ABOUT DEIA HERE

1678
01:14:32,201 --> 01:14:40,809
AT NICHD.

1679
01:14:40,876 --> 01:14:42,978
WE RECOGNIZE WE NEED DIVERSE

1680
01:14:43,045 --> 01:14:44,112
SCIENTISTS AT EVERY LEVEL.

1681
01:14:44,179 --> 01:14:46,982
IT ALLOWS US TO EXPAND THE

1682
01:14:47,049 --> 01:14:47,783
TALENT POOL AVAILABLE FOR

1683
01:14:47,850 --> 01:14:49,051
SCIENCE.

1684
01:14:49,117 --> 01:14:51,220
WE KNOW WE'RE ANSWERING QUITE

1685
01:14:51,286 --> 01:14:52,287
COMPLEX AND DIFFICULT QUESTIONS

1686
01:14:52,354 --> 01:14:57,626
AND NEED EVERYONE AT THE TABLE

1687
01:14:57,693 --> 01:14:58,594
TO HELP SOLVE THEM.

1688
01:14:58,660 --> 01:15:03,866
IT ALSO ALLOWS A WIDER RANGE OF

1689
01:15:03,932 --> 01:15:07,269
PERSPECTIVES.

1690
01:15:07,336 --> 01:15:17,913
AVOID BLIND SPOTS AND ADDRESS

1691
01:15:17,980 --> 01:15:21,750
CULTURAL EXPERIENCES AND IMPROVE

1692
01:15:21,817 --> 01:15:23,118
THE RESEARCH WE'RE SUPPORTING

1693
01:15:23,185 --> 01:15:24,286
AND CONDUCTING AND IS APPLICABLE

1694
01:15:24,353 --> 01:15:34,496
TO ALL.

1695
01:15:35,297 --> 01:15:38,033
A PARTICULAR INTEREST IS 2023

1696
01:15:38,100 --> 01:15:40,736
NIH DESIGNATED PEOPLE WITH

1697
01:15:40,802 --> 01:15:43,705
HEALTH DISPARITIES AS A HEALTH

1698
01:15:43,772 --> 01:15:46,208
DISPARITY POPULATION.

1699
01:15:46,275 --> 01:15:46,875
THEY'RE PREVENTIBLE DIFFERENCES

1700
01:15:46,942 --> 01:15:52,648
IN HEALTH OUTCOME.

1701
01:15:52,714 --> 01:15:53,782
PEOPLE WITH DISABILITIES

1702
01:15:53,849 --> 01:15:55,684
EXPERIENCE A VARYING RANGE OF

1703
01:15:55,751 --> 01:15:57,486
HEALTH CONDITIONS THAT LOAD TO

1704
01:15:57,552 --> 01:15:58,153
POORER HEALTH AND SHORTER LIFE

1705
01:15:58,220 --> 01:16:05,861
SPAN.

1706
01:16:05,928 --> 01:16:07,162
WE KNOW THERE'S EXCLUSIONARY

1707
01:16:07,229 --> 01:16:08,163
PRACTICES AND PROGRAMS AND

1708
01:16:08,230 --> 01:16:12,567
POLICIES THAT INHIBIT ACCESS TO

1709
01:16:12,634 --> 01:16:13,969
TIMELY HEALTH CARE WHICH FURTHER

1710
01:16:14,036 --> 01:16:14,503
RESULTS IN POORER HEALTH

1711
01:16:14,569 --> 01:16:19,541
OUTCOMES.

1712
01:16:19,608 --> 01:16:21,944
AND IT'S COMMON FOR PEOPLE WITH

1713
01:16:22,010 --> 01:16:24,379
DISABILITIES TO BELONG TO MORE

1714
01:16:24,446 --> 01:16:25,080
THAN ONE POPULATION WHO

1715
01:16:25,147 --> 01:16:27,616
EXPERIENCE HEALTH DISPARITIES

1716
01:16:27,683 --> 01:16:33,021
AND THAT IS REALLY

1717
01:16:33,088 --> 01:16:33,422
INTERSECTIONALITY.

1718
01:16:33,488 --> 01:16:37,726
THOSE DIFFERENT IDENTITIES CAN

1719
01:16:37,793 --> 01:16:40,028
JOIN INTO MAKE THEIR HEALTH

1720
01:16:40,095 --> 01:16:49,371
OUTCOMES EVEN WORSE.

1721
01:16:49,438 --> 01:16:50,973
I WANTED TO HIGHLIGHT THE

1722
01:16:51,039 --> 01:16:53,241
INTERVENTION ADDRESS THE

1723
01:16:53,308 --> 01:16:55,243
INTERSECTING IMPACT OF

1724
01:16:55,310 --> 01:16:58,981
DISABI

1725
01:16:59,047 --> 01:17:01,216
DISABILITY, RACE AND ETHNICITY

1726
01:17:01,283 --> 01:17:04,052
AND HEALTH CARE ACCESS AND

1727
01:17:04,119 --> 01:17:12,127
OUTCOMES.

1728
01:17:12,194 --> 01:17:14,429
NICHD IS ALSO WORKING TO ADD A

1729
01:17:14,496 --> 01:17:16,298
NEW CATEGORY TO IMPROVE THE

1730
01:17:16,365 --> 01:17:16,999
IDENTIFICATION OF RESEARCH

1731
01:17:17,065 --> 01:17:27,442
RELATED TO DISABILITY.

1732
01:17:28,076 --> 01:17:32,347
WHAT IS THE CATEGORY?

1733
01:17:32,414 --> 01:17:36,618
IT'S THE WAY RESEARCH FUNDED IN

1734
01:17:36,685 --> 01:17:38,286
PARTICULAR AREAS WITH CATEGORIES

1735
01:17:38,353 --> 01:17:40,322
AND DISABILITY IS NOT

1736
01:17:40,389 --> 01:17:42,491
INCORPORATED AS A CATEGORY

1737
01:17:42,557 --> 01:17:43,992
APPROPRIATELY THEN WE WOULDN'T

1738
01:17:44,059 --> 01:17:50,932
BE ABLE TO TRACK AND MONITOR

1739
01:17:50,999 --> 01:17:51,566
NIH'S INVESTMENT TO DISABILITY

1740
01:17:51,633 --> 01:18:01,810
RESEARCH.

1741
01:18:08,717 --> 01:18:14,856
PICTURE READY AREAS AND THERE'S

1742
01:18:14,923 --> 01:18:15,524
A DEMONSTRATION OF OUR SPENDING

1743
01:18:15,590 --> 01:18:25,500
ESTIMATES.

1744
01:18:25,567 --> 01:18:29,971
IT'S HIGH PRIORITY TO SUPPORT

1745
01:18:30,038 --> 01:18:35,243
INCLUSION AND ENGAGEMENT AND WE

1746
01:18:35,310 --> 01:18:37,746
HAVE MET NCMRR TO TALK ABOUT HOW

1747
01:18:37,813 --> 01:18:39,381
TO INCORPORATE PEOPLE WITH LIVED

1748
01:18:39,448 --> 01:18:40,782
EXPERIENCE IN THE RESEARCH WHICH

1749
01:18:40,849 --> 01:18:43,218
IS SOMETHING MCMRR HAS LED THE

1750
01:18:43,285 --> 01:18:49,291
CHARGE ON HERE AT NIXED.

1751
01:18:49,357 --> 01:18:50,959
-- NICHD.

1752
01:18:51,026 --> 01:18:52,828
WE HAVE A NEW OFFICE OF RESEARCH

1753
01:18:52,894 --> 01:18:54,429
ON THE EXTRAMURAL SIDE IS

1754
01:18:54,496 --> 01:18:56,364
INSTRUMENTAL IN PARTNERING WITH

1755
01:18:56,431 --> 01:19:01,103
US AND DEVELOPING A NUMBER OF

1756
01:19:01,169 --> 01:19:03,505
DIFFERENT TOOLS TO SUPPORT BOTH

1757
01:19:03,572 --> 01:19:10,045
OUR INTERNAL WORKFORCE AND

1758
01:19:10,112 --> 01:19:11,480
EXTRAMURAL INVESTIGATORS AND WE

1759
01:19:11,546 --> 01:19:12,747
WANT TO WELCOME YOUR THOUGHTS ON

1760
01:19:12,814 --> 01:19:14,516
THE INCLUSION OF PEOPLE WITH

1761
01:19:14,583 --> 01:19:15,750
DISABILITIES IN RESEARCH AND

1762
01:19:15,817 --> 01:19:16,885
ENGAGEMENT WITH COMMUNITIES AND

1763
01:19:16,952 --> 01:19:27,362
FEEL FREE TO E-MAIL US.

1764
01:19:35,237 --> 01:19:37,405
WE ALSO SUPPORT TRAINING AND

1765
01:19:37,472 --> 01:19:40,475
CAREER INVESTMENT STRATEGY AT

1766
01:19:40,542 --> 01:19:43,478
NICHD AND THAT'S REALLY

1767
01:19:43,545 --> 01:19:48,416
SUPPORTING US IN RE-THINKING HOW

1768
01:19:48,483 --> 01:19:50,051
WE SUPPORT TRAINEES AND HOW WE

1769
01:19:50,118 --> 01:19:51,286
THINK ABOUT WHAT SUCCESS MEANS

1770
01:19:51,353 --> 01:19:54,823
FOR TRAINEES AND HOW TO CONTINUE

1771
01:19:54,890 --> 01:19:57,559
TO DEVELOP OUR PROGRAMS TO BE A

1772
01:19:57,626 --> 01:19:59,394
RESOURCE FOR THE SCIENTIFIC

1773
01:19:59,461 --> 01:20:00,996
COMMUNITY AND PARTICULARLY

1774
01:20:01,062 --> 01:20:02,831
SUPPORT BROADENING THE PEOPLE

1775
01:20:02,898 --> 01:20:06,635
WHO ARE PARTICIPATING IN SCIENCE

1776
01:20:06,701 --> 01:20:07,702
AND INVOLVING UNDER REPRESENTED

1777
01:20:07,769 --> 01:20:15,143
COMMUNITIES.

1778
01:20:15,210 --> 01:20:17,746
I MENTIONED OUTREACH AND

1779
01:20:17,812 --> 01:20:19,581
ENGAGEMENT IN OUR KEY FOCUS

1780
01:20:19,648 --> 01:20:19,781
AREAS.

1781
01:20:19,848 --> 01:20:24,386
TO GIVE YOU A SNAPSHOT, OHE HAS

1782
01:20:24,452 --> 01:20:26,988
BEEN INVOLVED IN DOING A NUMBER

1783
01:20:27,055 --> 01:20:28,423
OF PRESENTATIONS AND

1784
01:20:28,490 --> 01:20:30,525
PARTICIPATING AT CONFERENCES.

1785
01:20:30,592 --> 01:20:33,528
WE ALSO HAVE BEEN AND THOSE ARE

1786
01:20:33,595 --> 01:20:38,066
MOSTLY EXTERNAL AND HAVE BEEN

1787
01:20:38,133 --> 01:20:39,201
DOING LISTENING TOUR AND

1788
01:20:39,267 --> 01:20:42,204
VISITING OFFICES, BRANCHES AND

1789
01:20:42,270 --> 01:20:42,637
DIVISIONS.

1790
01:20:42,704 --> 01:20:46,308
AND WELCOMING THEIR INPUT AND

1791
01:20:46,374 --> 01:20:48,543
THOUGHTS HOW NICHD APPROACHES

1792
01:20:48,610 --> 01:20:51,279
THE DEIA EFFORTS.

1793
01:20:51,346 --> 01:20:54,449
WE PROVIDE SEVERAL MONTHLY

1794
01:20:54,516 --> 01:20:59,955
NEWSLETTER AN COMMUNICATION

1795
01:21:00,021 --> 01:21:00,188
UPDATES.

1796
01:21:00,255 --> 01:21:01,856
WE ALSO COORDINATE COMMUNITY

1797
01:21:01,923 --> 01:21:05,493
SERVICE EVENTS LIKE OUR GROUP OF

1798
01:21:05,560 --> 01:21:07,629
EMPLOYEES PICTURES IN THE BOTTOM

1799
01:21:07,696 --> 01:21:11,199
LEFT AT THE CHILDREN'S INN.

1800
01:21:11,266 --> 01:21:12,667
THEY COLLABORATED TO PREPARE A

1801
01:21:12,734 --> 01:21:15,203
DINNER FOR THE CHILDREN AT THE

1802
01:21:15,270 --> 01:21:17,339
CHILDREN'S INN AND WE HAVE

1803
01:21:17,405 --> 01:21:18,740
SEVERAL MORE COMING.

1804
01:21:18,807 --> 01:21:24,846
AND WE ALSO PARTICIPATE NIH WIDE

1805
01:21:24,913 --> 01:21:25,013
ON.

1806
01:21:25,080 --> 01:21:30,151
THE CHIEF OFFICER FOR SKFK

1807
01:21:30,218 --> 01:21:30,785
WORKFORCE DIVERSITY CATALYST

1808
01:21:30,852 --> 01:21:32,287
COMMITTEE AS WELL AS CO-CHAIR

1809
01:21:32,354 --> 01:21:33,154
FOR CONFERENCE PLANNING

1810
01:21:33,221 --> 01:21:35,690
SUBCOMMITTEE THAT IS REALLY AIM

1811
01:21:35,757 --> 01:21:38,093
AT GETTING TRANS-NIH

1812
01:21:38,159 --> 01:21:41,896
PARTICIPATION IN DIVERSITY

1813
01:21:41,963 --> 01:21:43,231
RELATED CONFERENCES AND

1814
01:21:43,298 --> 01:21:45,467
CONFERENCE REACH POPULATIONS

1815
01:21:45,533 --> 01:21:46,735
THAT ARE UNDER REPRESENTED IN

1816
01:21:46,801 --> 01:21:51,606
THE SCIENCES.

1817
01:21:51,673 --> 01:21:55,110
THIS IS AN EXAMPLE OF THE OHE EX

1818
01:21:55,176 --> 01:22:01,116
TRNL  -- EXTERNAL ENGAGEMENT AND

1819
01:22:01,182 --> 01:22:02,250
OUR WORK ACROSS THE INSTITUTE.

1820
01:22:02,317 --> 01:22:06,688
THIS IS A PICTURE OF SEVERAL OF

1821
01:22:06,755 --> 01:22:08,223
US AT THE CONFERENCE LAST FALL

1822
01:22:08,290 --> 01:22:10,759
IN PHOENIX, ARIZONA.

1823
01:22:10,825 --> 01:22:16,798
AND PICTURED THERE WITH ME ARE

1824
01:22:16,865 --> 01:22:20,035
THE PROGRAM OFFICER IN OFFICE OF

1825
01:22:20,101 --> 01:22:23,838
HEALTH EQUITY, THE DEPUTY

1826
01:22:23,905 --> 01:22:29,010
DIRECTOR OF THE EXTRAMURAL

1827
01:22:29,077 --> 01:22:31,980
ACTIVITIES AN AN INTRAMURAL P.I.

1828
01:22:32,047 --> 01:22:35,250
THAT'S US REACHING ACROSS THE

1829
01:22:35,317 --> 01:22:36,017
INSTITUTE TO SUPPORT SCIENTIFIC

1830
01:22:36,084 --> 01:22:36,818
WORKFORCE DIVERSITY.

1831
01:22:36,885 --> 01:22:39,220
WE WOULD LOVE TO KNOW IF THERE

1832
01:22:39,287 --> 01:22:43,792
ARE MEETINGS THAT PERTAIN TO

1833
01:22:43,858 --> 01:22:46,928
NCMRR THAT SUPPORT A BROADER

1834
01:22:46,995 --> 01:22:48,763
PARTICIPATION IN RESEARCH BY A

1835
01:22:48,830 --> 01:22:50,598
BROADER GROUP OF RESEARCHERS AND

1836
01:22:50,665 --> 01:22:52,233
TRAINEES YOU WOULD LIKE THE

1837
01:22:52,300 --> 01:22:53,168
OFFICE OF HEALTH EQUITY TO PUT

1838
01:22:53,234 --> 01:22:58,606
ON OUR RADAR.

1839
01:22:58,673 --> 01:23:00,041
I'D LIKE TO THANK YOU FOR

1840
01:23:00,108 --> 01:23:01,743
INVITING ME TO PRESENT AND TELL

1841
01:23:01,810 --> 01:23:03,545
YOU A LITTLE BIT ABOUT OFFICE OF

1842
01:23:03,611 --> 01:23:05,847
HEALTH EQUITY AND WHAT WE'RE

1843
01:23:05,914 --> 01:23:07,949
WORKING ON ACROSS THE INSTITUTE.

1844
01:23:08,016 --> 01:23:10,652
WELCOME ANY QUESTIONS OR

1845
01:23:10,719 --> 01:23:11,219
SUGGESTIONS.

1846
01:23:11,286 --> 01:23:14,356
YOU CAN FEEL FREE TO ALSO E-MAIL

1847
01:23:14,422 --> 01:23:14,522
US.

1848
01:23:14,589 --> 01:23:16,558
MY CONTACT INFORMATION IS ON THE

1849
01:23:16,624 --> 01:23:20,795
SLIDE AND AGAIN THANK YOU.

1850
01:23:20,862 --> 01:23:24,032
>> THANK YOU, DR. PRICE FOR THE

1851
01:23:24,099 --> 01:23:26,768
REALLY OVERVIEW OF THE THINGS

1852
01:23:26,835 --> 01:23:27,268
YOU'RE DOING.

1853
01:23:27,335 --> 01:23:32,974
I'LL OPEN IT UP FOR QUESTIONS.

1854
01:23:33,041 --> 01:23:38,513
LOUIS.

1855
01:23:38,580 --> 01:23:39,247
>> GOOD MORNING.

1856
01:23:39,314 --> 01:23:40,248
THANK YOU SO MUCH FOR THE

1857
01:23:40,315 --> 01:23:42,784
PRESENTATION.

1858
01:23:42,851 --> 01:23:44,652
I REALLY APPRECIATE SEEING YOU

1859
01:23:44,719 --> 01:23:45,353
HERE.

1860
01:23:45,420 --> 01:23:47,922
IN TERMS OF CONFERENCES TO PUT

1861
01:23:47,989 --> 01:23:54,496
ON YOUR RADAR I'LL RECOMMEND THE

1862
01:23:54,562 --> 01:24:03,772
AMERICAN SOCIETY FOR NEURO.

1863
01:24:03,838 --> 01:24:07,575
I HAVE TWO QUESTIONS I HAVE A

1864
01:24:07,642 --> 01:24:10,078
LOT BUT STICK TO TWO.

1865
01:24:10,145 --> 01:24:11,112
YOU MENTIONED WORK RELATED TO

1866
01:24:11,179 --> 01:24:12,747
THE OFFICE OF CLINICAL RESEARCH

1867
01:24:12,814 --> 01:24:17,218
I FORGOT THE REST OF THE TITLE.

1868
01:24:17,285 --> 01:24:22,857
THINKING ABOUT REGULARLY OF THE

1869
01:24:22,924 --> 01:24:27,595
POPULATION AND IN CERTAIN AREAS.

1870
01:24:27,662 --> 01:24:31,032
I'VE NOTED AND I NOTICED

1871
01:24:31,099 --> 01:24:32,567
CONVERSATIONS WITH COLLEAGUES OF

1872
01:24:32,634 --> 01:24:34,302
MINE AND OTHER AREAS WHERE

1873
01:24:34,369 --> 01:24:37,472
THERE'S A GENUINE INTEREST IN

1874
01:24:37,539 --> 01:24:42,243
REALLY UNDERSTANDING EXACTLY HOW

1875
01:24:42,310 --> 01:24:46,481
TO DIVERSIFY STUDY POPULATIONS

1876
01:24:46,548 --> 01:24:47,949
BEYOND THINGS LIKE DEMOGRAPHICS

1877
01:24:48,016 --> 01:24:49,417
OF THE ZIP CODE OR SOMETHING

1878
01:24:49,484 --> 01:24:50,752
LIKE THAT.

1879
01:24:50,819 --> 01:24:53,788
AND I WAS CURIOUS TO KNOW IF

1880
01:24:53,855 --> 01:24:55,623
THERE'S PROGRESS WITH ANY TOOLS

1881
01:24:55,690 --> 01:24:57,725
OR SYSTEMS OR RESOURCES.

1882
01:24:57,792 --> 01:24:58,927
THERE'S A LOT OF DATABASES OUT

1883
01:24:58,993 --> 01:25:00,328
THERE PEOPLE DON'T REALLY KNOW

1884
01:25:00,395 --> 01:25:02,964
ABOUT BUT KIND OF UNDERSTANDING

1885
01:25:03,031 --> 01:25:04,065
IF THERE ARE THINGS EMERGING IN

1886
01:25:04,132 --> 01:25:08,303
THAT AREA RIGHT NOW.

1887
01:25:08,369 --> 01:25:09,971
>> THANK YOU.

1888
01:25:10,038 --> 01:25:13,408
IT IS CERTAINLY A COMPLICATED

1889
01:25:13,475 --> 01:25:13,608
SPACE.

1890
01:25:13,675 --> 01:25:16,778
WE UNDERSTAND FROM THE NCMRR OUR

1891
01:25:16,845 --> 01:25:18,313
PERSPECTIVE ON MANY OF THE

1892
01:25:18,379 --> 01:25:20,548
CONDITIONS THAT YOU ALL FOCUS ON

1893
01:25:20,615 --> 01:25:22,083
COULD BE RARE.

1894
01:25:22,150 --> 01:25:25,220
I HAVE RARE DISEASES SO I HAVE

1895
01:25:25,286 --> 01:25:29,724
MY ZEBRA IN THE BACKGROUND AS

1896
01:25:29,791 --> 01:25:30,024
WELL.

1897
01:25:30,091 --> 01:25:34,295
THERE'S ALSO LOGISTICAL AND

1898
01:25:34,362 --> 01:25:35,230
STRUCTURAL CHALLENGE FOR

1899
01:25:35,296 --> 01:25:36,698
INVOLVING A BROADER RANGE OF

1900
01:25:36,764 --> 01:25:37,866
TEAM IN RESEARCH.

1901
01:25:37,932 --> 01:25:39,567
ESSENTIALLY HALF MY TEAM IS

1902
01:25:39,634 --> 01:25:41,569
DIGGING IN DEEP LOOKING AT WHAT

1903
01:25:41,636 --> 01:25:42,704
ARE THOSE BEST PRACTICES AND

1904
01:25:42,770 --> 01:25:46,407
WHAT ARE STRATEGIES AND WHAT ARE

1905
01:25:46,474 --> 01:25:51,379
SOME EMERGING RESOURCES AND

1906
01:25:51,446 --> 01:25:52,780
IDEAS TO SUPPORT THAT.

1907
01:25:52,847 --> 01:25:55,783
RIGHT NOW WE'RE NOT AT THE POINT

1908
01:25:55,850 --> 01:25:58,219
OF BEING ABLE TO PRESENT THAT

1909
01:25:58,286 --> 01:26:01,456
BUT I WOULD SAY STAY TUNED AND

1910
01:26:01,523 --> 01:26:03,625
WE WILL CERTAINLY BE SHARING

1911
01:26:03,691 --> 01:26:06,294
WHAT WE FIND WITH NCMRR AS WELL

1912
01:26:06,361 --> 01:26:06,895
AS ACROSS THE INSTITUTE AS I

1913
01:26:06,961 --> 01:26:08,663
MENTIONED.

1914
01:26:08,730 --> 01:26:10,732
>> THANK YOU, THAT'S GREAT.

1915
01:26:10,798 --> 01:26:12,300
THE OTHER QUESTION BRIEFLY

1916
01:26:12,367 --> 01:26:16,538
RELATED TO WORKFORCE DEVELOPMENT

1917
01:26:16,604 --> 01:26:18,106
IDEAS PARTICULARLY THINKING

1918
01:26:18,172 --> 01:26:19,674
ABOUT DIVERSIFY THE WORKFORCE.

1919
01:26:19,741 --> 01:26:24,546
I NOTED A LOT OF THE WORK THAT

1920
01:26:24,612 --> 01:26:27,682
SOME OF OUR SOCIETIES HAVE DONE

1921
01:26:27,749 --> 01:26:29,617
PARTICULARLY THE ENGINEERING.

1922
01:26:29,684 --> 01:26:32,587
ONE OF THE BLACK ENGINEERING

1923
01:26:32,654 --> 01:26:37,492
SOCIETIES HAS HEAVILY FOCUSSED

1924
01:26:37,559 --> 01:26:38,693
IN PRIMARY AND SECONDARY

1925
01:26:38,760 --> 01:26:40,562
EDUCATION AREAS.

1926
01:26:40,628 --> 01:26:43,331
ED A LOVE TO KNOW IF THERE ARE

1927
01:26:43,398 --> 01:26:45,567
ANY EFFORTS OR FOCUS, BETTER

1928
01:26:45,633 --> 01:26:47,869
WAYS TO ENGAGE WITH ELEMENTARY

1929
01:26:47,936 --> 01:26:49,270
SCHOOLS OR SECONDARY SCHOOLS,

1930
01:26:49,337 --> 01:26:51,806
THAT KIND OF THING TO REALLY

1931
01:26:51,873 --> 01:26:52,507
STIMULATE INTEREST IN THE WORK

1932
01:26:52,574 --> 01:26:56,778
THAT WE'RE DOING.

1933
01:26:56,844 --> 01:26:59,180
>> SO I THINK THE BIGGEST POINT

1934
01:26:59,247 --> 01:27:05,019
IN THIS AREA IS TO INTERVENE AND

1935
01:27:05,086 --> 01:27:07,889
INVOLVE CHILDREN AS EARLY AS

1936
01:27:07,956 --> 01:27:08,156
POSSIBLE.

1937
01:27:08,222 --> 01:27:10,992
THERE'S STUDIES THAT HAVE SHOWN

1938
01:27:11,059 --> 01:27:16,431
IF YOU ASK EVEN AN ELEMENTARY

1939
01:27:16,497 --> 01:27:18,967
SCHOOL CHILD TO DRAW A SCIENTIST

1940
01:27:19,033 --> 01:27:23,938
THEY DRAW AN OLD WHITE MAN AND

1941
01:27:24,005 --> 01:27:25,807
THE PICTURE WON'T LOOK LIKE THE

1942
01:27:25,873 --> 01:27:28,910
CHILD THEMSELVES IN MOST CASES.

1943
01:27:28,977 --> 01:27:30,778
THE MOST IMPORTANT THING IS

1944
01:27:30,845 --> 01:27:32,513
INTERVENING EARLY ON AND WE ARE

1945
01:27:32,580 --> 01:27:34,482
LOOKING AT WAYS TO PARTNER WITH

1946
01:27:34,549 --> 01:27:36,784
OUR OFFICE OF EDUCATION

1947
01:27:36,851 --> 01:27:39,320
PARTICULARLY ON THE INTRAMURAL

1948
01:27:39,387 --> 01:27:41,489
SIDE TO PARTICIPATE IN SCIENCE

1949
01:27:41,556 --> 01:27:43,257
FAIRS FOR EXAMPLE.

1950
01:27:43,324 --> 01:27:44,425
THERE ARE OPPORTUNITIES FOR

1951
01:27:44,492 --> 01:27:46,294
NICHD STAFF TO SERVE AS JUDGES

1952
01:27:46,361 --> 01:27:50,431
AND THEN WE CAN INVITE THEM AS

1953
01:27:50,498 --> 01:27:52,800
THE PRIZE TO TRAIN ON OUR

1954
01:27:52,867 --> 01:27:54,035
INTRAMURAL SIDE.

1955
01:27:54,102 --> 01:27:57,905
WE'RE ALSO LOOKING AT SUPPORTING

1956
01:27:57,972 --> 01:27:59,374
LIKE SCIENCE FAIRS AND OTHER

1957
01:27:59,440 --> 01:28:00,942
SCIENCE DEMONSTRATIONS FOR

1958
01:28:01,009 --> 01:28:02,744
YOUNGER GENERATIONS AND ACTUALLY

1959
01:28:02,810 --> 01:28:05,480
IN MY INTERVIEW A YEAR AGO I

1960
01:28:05,546 --> 01:28:09,083
SAID NICHD IS REALLY PRIME TO

1961
01:28:09,150 --> 01:28:09,784
INTERVENE IN YOUNGER CHILDREN

1962
01:28:09,851 --> 01:28:12,487
BECAUSE OF THE MISSION OF OUR

1963
01:28:12,553 --> 01:28:12,754
INSTITUTE.

1964
01:28:12,820 --> 01:28:16,024
SO WE'RE CERTAINLY THINKING OF

1965
01:28:16,090 --> 01:28:18,126
WAYS BUT I THINK THE MAIN

1966
01:28:18,192 --> 01:28:24,232
MESSAGES THE SOONER THE BETTER.

1967
01:28:24,298 --> 01:28:26,067
>> THANK YOU.

1968
01:28:26,134 --> 01:28:26,334
FRANCISCO.

1969
01:28:26,401 --> 01:28:27,168
>> THANK YOU SO MUCH.

1970
01:28:27,235 --> 01:28:28,803
VERY GOOD OVERVIEW.

1971
01:28:28,870 --> 01:28:37,311
I WAS VERY IN COUR -- ENCOURAGE

1972
01:28:37,378 --> 01:28:38,246
SEE THE DISSEMINATION PLAN

1973
01:28:38,312 --> 01:28:39,247
BECAUSE MOST INVESTIGATORS ARE

1974
01:28:39,313 --> 01:28:41,582
NOT CLEAR ABOUT THAT.

1975
01:28:41,649 --> 01:28:52,193
MORE SPECIFICALLY, IN TERMS OF

1976
01:28:53,127 --> 01:28:54,929
DIVERSIFYING THE WORKFORCE OFF

1977
01:28:54,996 --> 01:28:55,830
THE FELLOWSHIPS WHERE IT'S

1978
01:28:55,897 --> 01:28:57,398
SOMEONE WHO HAS NOT YET BEEN

1979
01:28:57,465 --> 01:29:01,402
ADMITTED TO A Ph.D. PROGRAM IS

1980
01:29:01,469 --> 01:29:05,373
ABLE TO APPLY AND ESSENTIALLY BY

1981
01:29:05,440 --> 01:29:07,108
HAVING THIS AWARD ESSENTIALLY

1982
01:29:07,175 --> 01:29:07,909
ABLE TO CHOOSE WHERE THEY GO TO

1983
01:29:07,975 --> 01:29:11,879
TRAIN.

1984
01:29:11,946 --> 01:29:14,949
IS THERE TALK ABOUT EXPANDING

1985
01:29:15,016 --> 01:29:16,751
THE F PROGRAM TO -- WE KEEP

1986
01:29:16,818 --> 01:29:18,152
GOING DOWN THE NUMBERS.

1987
01:29:18,219 --> 01:29:20,054
SOMETHING LIKE AN F29 THAT IS

1988
01:29:20,121 --> 01:29:23,424
BEFORE THE F30 BECAUSE THE F30

1989
01:29:23,491 --> 01:29:25,993
IS WHEN YOU'RE ALREADY

1990
01:29:26,060 --> 01:29:26,861
MATRICULATED AND HAVE BEAT ALL

1991
01:29:26,928 --> 01:29:31,065
THE ODDS TO GET INTO A DOCTORAL

1992
01:29:31,132 --> 01:29:33,067
PROGRAM.

1993
01:29:33,134 --> 01:29:35,069
IT'S A VERY SMALL POPULATION

1994
01:29:35,136 --> 01:29:37,605
THAT CAN DO THAT.

1995
01:29:37,672 --> 01:29:41,609
HOWEVER, BEING ABLE TO USE AN F

1996
01:29:41,676 --> 01:29:45,813
MECHANISM TO DIVERSIFY AT THE

1997
01:29:45,880 --> 01:29:48,015
GROUND FLOOR AT LEAST IN THE

1998
01:29:48,082 --> 01:29:49,984
UNIVERSITY DOCTORAL CONTEXT IS

1999
01:29:50,051 --> 01:29:50,284
USEFUL.

2000
01:29:50,351 --> 01:29:50,918
HAVE YOU CONSIDERED THAT IN YOUR

2001
01:29:50,985 --> 01:29:55,823
OFFICE?

2002
01:29:55,890 --> 01:29:56,691
>> THANK YOU.

2003
01:29:56,758 --> 01:29:58,526
I WANT TO HIGHLIGHT DR. CRUZ FOR

2004
01:29:58,593 --> 01:30:00,561
LEADING OUR TRAINING WORKING

2005
01:30:00,628 --> 01:30:02,530
GROUP RECOMMENDATIONS BUT WE

2006
01:30:02,597 --> 01:30:06,667
HAVE JUST PUT TOGETHER A

2007
01:30:06,734 --> 01:30:08,503
TRAINING IMPLEMENTATION GROUP

2008
01:30:08,569 --> 01:30:11,506
AND THE PROGRAM OFFICER SERVES

2009
01:30:11,572 --> 01:30:12,507
ON THAT GROUP.

2010
01:30:12,573 --> 01:30:15,176
SO THEY'RE NEEDING TO THINK

2011
01:30:15,243 --> 01:30:19,313
ABOUT WHAT ARE THOSE PARTICULAR

2012
01:30:19,380 --> 01:30:23,551
MECHANISMS AND AVENUES THAT WE

2013
01:30:23,618 --> 01:30:24,719
CAN SUPPORT INVESTIGATORS OR

2014
01:30:24,786 --> 01:30:30,124
TRAINEES AT AN EARLY STAGE AND

2015
01:30:30,191 --> 01:30:32,393
BUILDS ON THE EARLIER QUESTION.

2016
01:30:32,460 --> 01:30:34,395
THE OTHER THING THE OFFICE OF

2017
01:30:34,462 --> 01:30:36,931
HEALTH EQUITY HAS THE BENEFIT OF

2018
01:30:36,998 --> 01:30:39,600
WE WORK WITH INTRAMURAL DIVISION

2019
01:30:39,667 --> 01:30:40,935
ON OUR POST-BAC.

2020
01:30:41,002 --> 01:30:47,375
WE HAVE PRE-BAC AND POST-BAC

2021
01:30:47,441 --> 01:30:48,376
TRAINING BEFORE THEY'RE EITHER

2022
01:30:48,442 --> 01:30:51,112
CURRENT UNDERGRADUATE STUDENTS

2023
01:30:51,179 --> 01:30:53,447
OR RECENTLY GRADUATED FROM

2024
01:30:53,514 --> 01:30:54,148
UNDERGRADUATE.

2025
01:30:54,215 --> 01:30:55,750
SO LEARNING FROM THAT GROUP HOW

2026
01:30:55,817 --> 01:30:59,320
BEST THEY CAN BE SUPPORTED ON

2027
01:30:59,387 --> 01:31:03,257
CONTINUING ON IN OUR RESEARCH

2028
01:31:03,324 --> 01:31:03,691
CAREER.

2029
01:31:03,758 --> 01:31:05,293
WE WILL BE ABLE TO ADD THOSE TO

2030
01:31:05,359 --> 01:31:06,727
THE TRAINING WORKING GROUP ON

2031
01:31:06,794 --> 01:31:08,029
THE EXTRAMURAL SIDE TO THINK

2032
01:31:08,095 --> 01:31:10,965
THROUGH MECHANISMS TO SUPPORT

2033
01:31:11,032 --> 01:31:11,599
THE BROADER SCIENTIFIC TRAINING

2034
01:31:11,666 --> 01:31:14,502
COMMUNITY.

2035
01:31:14,569 --> 01:31:15,069
>> THANK YOU.

2036
01:31:15,136 --> 01:31:15,703
MICHELLE, DID YOU STILL HAVE A

2037
01:31:15,770 --> 01:31:17,471
QUESTION?

2038
01:31:17,538 --> 01:31:21,609
>> I KIND OF HAD LIKE A

2039
01:31:21,676 --> 01:31:26,447
COMMENT/QUESTION OR CONCERN.

2040
01:31:26,514 --> 01:31:31,853
I KNOW THERE'S A LOT OF ACTIVITY

2041
01:31:31,919 --> 01:31:42,463
AROUND DEI AND IN TERMS OF THE

2042
01:31:48,903 --> 01:31:49,203
IMP

2043
01:31:49,270 --> 01:31:52,840
IMPACT AT NIH I WAS ENCOURAGED

2044
01:31:52,907 --> 01:31:54,809
BUT CONCERNED WITH THE

2045
01:31:54,876 --> 01:31:56,177
INITIATIVES BE IMPACTED AND IS

2046
01:31:56,244 --> 01:31:57,912
THERE A WAY TO MAKE SURE THEY'RE

2047
01:31:57,979 --> 01:32:01,182
NOT IMPACTED REGARDLESS OF WHO

2048
01:32:01,249 --> 01:32:02,750
IS IN THE WHITE HOUSE IS WHERE I

2049
01:32:02,817 --> 01:32:07,688
WAS THINKING ABOUT THIS.

2050
01:32:07,755 --> 01:32:08,522
>> YES, THANK YOU.

2051
01:32:08,589 --> 01:32:11,125
FIRST I THINK IT'S IMPORTANT TO

2052
01:32:11,192 --> 01:32:13,127
POINT OUT NIH HAS ALWAYS HAD A

2053
01:32:13,194 --> 01:32:14,896
BROAD DEFINITION OF DIVERSITY

2054
01:32:14,962 --> 01:32:17,098
AND IT'S NEVER FOCUSSED ON ONE

2055
01:32:17,164 --> 01:32:19,066
PARTICULAR GROUP SO IT'S WELL

2056
01:32:19,133 --> 01:32:21,369
BEYOND RACE AND ETHNICITY WHICH

2057
01:32:21,435 --> 01:32:26,908
IS ONE OF THE AREAS THAT'S BEEN

2058
01:32:26,974 --> 01:32:28,342
FOCUSSED ON WITH THE RECENT

2059
01:32:28,409 --> 01:32:30,144
RULINGS AND POLICY CHANGES.

2060
01:32:30,211 --> 01:32:31,779
OUR TRAINING PROGRAMS AND OTHER

2061
01:32:31,846 --> 01:32:33,180
DIVERSITY INITIATIVES HAVE BEEN

2062
01:32:33,247 --> 01:32:36,050
NOT BEEN DIRECTLY IMPACTED.

2063
01:32:36,117 --> 01:32:40,721
HOWEVER, CERTAINLY PEOPLE'S

2064
01:32:40,788 --> 01:32:43,824
ABILITY TO APPLY AND SUBMIT

2065
01:32:43,891 --> 01:32:45,159
CERTAIN PARTS OF THE APPLICATION

2066
01:32:45,226 --> 01:32:46,794
HAVE AND SO NIH IS THINKING HOW

2067
01:32:46,861 --> 01:32:51,799
TO REPACKAGE CHOTHOSE SO THEY'R

2068
01:32:51,866 --> 01:32:54,902
RESILIENT TO CHANGING LOCAL

2069
01:32:54,969 --> 01:32:55,336
POLICIES.

2070
01:32:55,403 --> 01:32:56,771
OVER ALL NICHD HAS ALWAYS BEEN

2071
01:32:56,837 --> 01:32:59,106
COMMITTED IN THINK ABOUT HOW TO

2072
01:32:59,173 --> 01:33:00,741
PROMOTE HEALTH FOR ALL.

2073
01:33:00,808 --> 01:33:03,077
AND WE MAY HAVE TO CHANGE THE

2074
01:33:03,144 --> 01:33:06,013
WAY IN WHICH WE TALK ABOUT IT.

2075
01:33:06,080 --> 01:33:08,716
THE TERMS IN WHICH WE USE BUT

2076
01:33:08,783 --> 01:33:10,818
OUR COMMITMENT REMAINS.

2077
01:33:10,885 --> 01:33:13,821
I MENTIONED BRIEFLY WE'RE WORK

2078
01:33:13,888 --> 01:33:15,656
ON A NEW LANDING PAGE THAT'S

2079
01:33:15,723 --> 01:33:17,658
GOING TO BE CALLED RESEARCH FOR

2080
01:33:17,725 --> 01:33:19,060
ALL.

2081
01:33:19,126 --> 01:33:23,631
WE HAVE ALREADY STARTED THINKING

2082
01:33:23,698 --> 01:33:27,101
ABOUT HOW TO BROADEN -- HOW WE

2083
01:33:27,168 --> 01:33:29,637
TALK ABOUT DEIA INITIATIVES AND

2084
01:33:29,704 --> 01:33:32,740
IT TRULY MEANS SUPPORT FOR ALL

2085
01:33:32,807 --> 01:33:34,875
PEOPLE POTENTIALLY INTERESTED IN

2086
01:33:34,942 --> 01:33:36,477
OPPORTUNITIES AT NICHD AND IT'S

2087
01:33:36,544 --> 01:33:40,014
GOING TO MAKE IT EASIER FOR

2088
01:33:40,081 --> 01:33:42,550
PEOPLE TO NAVIGATE TO PARTICULAR

2089
01:33:42,616 --> 01:33:43,684
OPPORTUNITIES THAT MAY BE OF

2090
01:33:43,751 --> 01:33:46,454
INTEREST TO THEM AND WE ALSO

2091
01:33:46,520 --> 01:33:48,823
PLAN ON HIGHLIGHTING SUCCESS

2092
01:33:48,889 --> 01:33:51,125
STORIES OF PEOPLE FROM MANY

2093
01:33:51,192 --> 01:33:52,526
DIFFERENT BACKGROUNDS AND TO

2094
01:33:52,593 --> 01:33:55,663
ALSO PROVIDE EXAMPLES AND

2095
01:33:55,730 --> 01:33:59,500
SUPPORT FOR PEOPLE TO

2096
01:33:59,567 --> 01:34:01,869
PARTICIPATE IN OUR INSTITUTE.

2097
01:34:01,936 --> 01:34:03,771
BUT IT'S AN EVER EVOLVING

2098
01:34:03,838 --> 01:34:06,707
CLIMATE WE'RE MONITORING BUT THE

2099
01:34:06,774 --> 01:34:09,176
NICHD'S STEADFAST COMMITMENT AS

2100
01:34:09,243 --> 01:34:12,279
PART OF OUR MISSION TO ENSURE

2101
01:34:12,346 --> 01:34:17,485
THE HEALTH OF PEOPLE, FAMILIES,

2102
01:34:17,551 --> 01:34:18,085
CHILDREN ALL THAT BROAD SCOPE

2103
01:34:18,152 --> 01:34:22,923
AND FOCUS.

2104
01:34:22,990 --> 01:34:24,258
>> THANK YOU.

2105
01:34:24,325 --> 01:34:26,327
ONE LAST QUESTION, PEPE.

2106
01:34:26,394 --> 01:34:28,062
>> THANK YOU FOR YOUR EXCELLENT

2107
01:34:28,129 --> 01:34:28,662
PRESENTATION.

2108
01:34:28,729 --> 01:34:30,931
I WOULD LIKE TO EMPHASIZE THAT

2109
01:34:30,998 --> 01:34:34,502
IT'S NEVER TOO EARLY TO

2110
01:34:34,568 --> 01:34:35,870
ENCOURAGE SCIENCE.

2111
01:34:35,936 --> 01:34:39,040
WE'RE PARTNERING WITH MUSEUMS

2112
01:34:39,106 --> 01:34:42,276
AND PROFESSIONALS FROM THE

2113
01:34:42,343 --> 01:34:46,580
PERFORMING ART BRINGING

2114
01:34:46,647 --> 01:34:52,319
TECHNOLOGY AND SCIENCE AND KWWH

2115
01:34:52,386 --> 01:34:54,221
IT TAKES TO CONDUCT SCIENCE.

2116
01:34:54,288 --> 01:35:02,630
WE WERE ABLE TO REACH OUT TO

2117
01:35:02,696 --> 01:35:05,766
1500 CHILDREN AND IT'S NOT ONLY

2118
01:35:05,833 --> 01:35:07,068
THE OUTREACH BUT THE STUDENTS

2119
01:35:07,134 --> 01:35:10,771
ARE RUNNING EXPERIMENTS AND OF

2120
01:35:10,838 --> 01:35:11,772
COURSE THE RESEARCH.

2121
01:35:11,839 --> 01:35:14,608
I HOPE THAT WE CAN DO THIS MORE

2122
01:35:14,675 --> 01:35:19,013
AND IT'S SOMETHING THAT IS EASY

2123
01:35:19,080 --> 01:35:20,114
TO SCALE UP IN THE FUTURE.

2124
01:35:20,181 --> 01:35:20,681
THANK YOU.

2125
01:35:20,748 --> 01:35:22,383
>> THAT'S GREAT.

2126
01:35:22,450 --> 01:35:24,085
I WANTED TO MAKE ONE QUICK

2127
01:35:24,151 --> 01:35:24,318
COMMENT.

2128
01:35:24,385 --> 01:35:27,621
WE TALKED A LOT ABOUT SUPPORTING

2129
01:35:27,688 --> 01:35:29,490
STUDENTS AT EARLIER STAGES.

2130
01:35:29,557 --> 01:35:31,625
I WANTED TO HIGHLIGHT OUR

2131
01:35:31,692 --> 01:35:32,359
DIVERSITY SUPPLEMENT PROGRAM

2132
01:35:32,426 --> 01:35:33,727
STARTS WITH SUPPORT OF HIGH

2133
01:35:33,794 --> 01:35:35,129
SCHOOL STUDENTS AND UNDERGRAD

2134
01:35:35,196 --> 01:35:37,031
AND POST-BACS.

2135
01:35:37,098 --> 01:35:40,334
WE GENERALLY THINK ABOUT IT IN

2136
01:35:40,401 --> 01:35:42,036
THE UPPER LEVELS BUT GOES TO

2137
01:35:42,103 --> 01:35:43,671
HIGH SCHOOLS SO I WANTED TO MAKE

2138
01:35:43,737 --> 01:35:45,139
THAT POINT.

2139
01:35:45,206 --> 01:35:46,273
>> THANK YOU.

2140
01:35:46,340 --> 01:35:51,145
WE'LL TURN IT BACK TO RALPH NOW.

2141
01:35:51,212 --> 01:35:52,246
>> I APPRECIATE THE DISCUSSION.

2142
01:35:52,313 --> 01:35:53,848
I THOUGHT THAT WOULD BE

2143
01:35:53,914 --> 01:35:55,382
SOMETHING THAT WOULD ENGAGE THE

2144
01:35:55,449 --> 01:35:58,219
GROUP AND I APPRECIATE AMANDA

2145
01:35:58,285 --> 01:35:59,620
FOR BRINGING THAT BACKGROUND.

2146
01:35:59,687 --> 01:36:02,857
I THINK IT'S AN IMPORTANT TOPIC.

2147
01:36:02,923 --> 01:36:04,758
I'M PROOFED TO INTRODUCE ANOTHER

2148
01:36:04,825 --> 01:36:13,033
ONE OF MY NICHD -- PLEASED TO

2149
01:36:13,100 --> 01:36:18,706
INTRODUCE DR. ANTONELO PILEGGI

2150
01:36:18,772 --> 01:36:20,007
INTERESTED IN MEDICAL DEVICES

2151
01:36:20,074 --> 01:36:22,977
AND DRUG DELIVERY SYSTEMS AND

2152
01:36:23,043 --> 01:36:23,677
HEALTH ACTIVITIES.

2153
01:36:23,744 --> 01:36:26,247
SO HE'S HELPING US LEAD AN

2154
01:36:26,313 --> 01:36:29,517
INTERAGENCY EFFORT IN PEDIATRIC

2155
01:36:29,583 --> 01:36:32,786
MEDICAL DEVICE AND IT'S ALSO A

2156
01:36:32,853 --> 01:36:36,524
PUBLIC-PRIVATE PARTNERSHIP AND

2157
01:36:36,590 --> 01:36:37,758
HE'S BEEN A PARTICIPANT IN THE

2158
01:36:37,825 --> 01:36:38,759
FIRST TWO DAYS OF THE MEETING.

2159
01:36:38,826 --> 01:36:40,895
WE APPRECIATE YOUR ENGAGEMENT.

2160
01:36:40,961 --> 01:36:42,863
HE'S GOING TO GIVE US BACKGROUND

2161
01:36:42,930 --> 01:36:49,203
ON UPDATES ON PEDIATRIC MEDICAL

2162
01:36:49,270 --> 01:36:53,541
DEVICE IN THE PUB

2163
01:36:53,607 --> 01:36:54,341
PUBLIC-PRIVATE PARTNERSHIP.

2164
01:36:54,408 --> 01:36:56,177
>> THANK YOU FOR THE OPPORTUNITY

2165
01:36:56,243 --> 01:37:03,951
TO SHARE PROGRESS WE'RE MAKING.

2166
01:37:04,018 --> 01:37:14,328
LETS GET STARTED.

2167
01:37:20,167 --> 01:37:28,409
THE DEVICES ARE QUITE BROAD AND

2168
01:37:28,475 --> 01:37:30,411
YOU CAN ENVISION THERE'S QUITE

2169
01:37:30,477 --> 01:37:34,181
THE BROAD SPECTRUM HERE AND

2170
01:37:34,248 --> 01:37:36,116
THERE ARE CHALLENGES AND THE

2171
01:37:36,183 --> 01:37:37,218
DEVELOPMENT OF MEDICAL DEVICES

2172
01:37:37,284 --> 01:37:39,019
FOR PEDIATRICS.

2173
01:37:39,086 --> 01:37:41,121
FIRST OF ALL, IT'S AN OXYMORON

2174
01:37:41,188 --> 01:37:43,023
BUT CHILDREN ARE NOT SMALL

2175
01:37:43,090 --> 01:37:45,759
ADULTS AND YOU CAN IMAGINE A

2176
01:37:45,826 --> 01:37:47,995
SMALL BABY NEWBORN BABY THAT HAS

2177
01:37:48,062 --> 01:37:51,765
TO GROW TO FULL MATURITY AND A

2178
01:37:51,832 --> 01:37:53,133
LOT OF CHANGES THAT OCCUR IN THE

2179
01:37:53,200 --> 01:37:56,804
EARLY YEARS OF LIFE AND

2180
01:37:56,870 --> 01:37:58,973
THROUGHOUT ADOLESCENCE BEFORE

2181
01:37:59,039 --> 01:38:08,215
THEY ARE PRE-ADULT THERE'S

2182
01:38:08,282 --> 01:38:08,816
PHYSIOLOGICAL AND DIMENSIONS

2183
01:38:08,882 --> 01:38:14,455
AND.

2184
01:38:14,521 --> 01:38:18,626
-- AND NEEDS AND CONSIDERATION

2185
01:38:18,692 --> 01:38:26,267
ARE TO DEVICES IN PEDIATRICS.

2186
01:38:26,333 --> 01:38:27,801
AND THERE'S CONSIDERATIONS WE'VE

2187
01:38:27,868 --> 01:38:30,471
ALLUDED TO AND ALSO IN THE CASE

2188
01:38:30,537 --> 01:38:33,107
OF LONG-TERM DEVICE USERS IF

2189
01:38:33,173 --> 01:38:34,508
YOU'RE CONSIDERING DEVICES

2190
01:38:34,575 --> 01:38:39,213
IMPLANTED IN THE BODY AND THEY

2191
01:38:39,280 --> 01:38:43,784
KNEAD TO BE IN PLACE FOR LONG

2192
01:38:43,851 --> 01:38:45,619
TERM AND NEED TO MODIFY THE SIZE

2193
01:38:45,686 --> 01:38:47,354
OF THE DEVICE, ETCETERA ARE

2194
01:38:47,421 --> 01:38:50,157
MAJOR CONCERNS FOR THE

2195
01:38:50,224 --> 01:38:52,159
REGULATORS FOR THOSE MAKING THE

2196
01:38:52,226 --> 01:38:52,593
DEVICES.

2197
01:38:52,660 --> 01:38:59,600
AND LAST BUT NOT LEAST IS LOW

2198
01:38:59,667 --> 01:39:01,969
RETURN ON INVESTMENT.

2199
01:39:02,036 --> 01:39:04,138
IT'S A SMALL MARKET AND

2200
01:39:04,204 --> 01:39:09,743
SOMETIMES INNOVATORS OR

2201
01:39:09,810 --> 01:39:11,679
COMPANIES DON'T GET ENGAGED IN

2202
01:39:11,745 --> 01:39:13,514
THE SPACE BECAUSE OF THE HIGH

2203
01:39:13,580 --> 01:39:15,049
RISK AND PURSUE OTHERS.

2204
01:39:15,115 --> 01:39:18,919
THIS LEADS TO OFTEN TIMES

2205
01:39:18,986 --> 01:39:21,755
DEVICES THAT ARE SPECIFICALLY

2206
01:39:21,822 --> 01:39:23,624
DESIGNED FOR PEDIATRIC

2207
01:39:23,691 --> 01:39:25,192
POPULATIONS AND MAYBE USE OF

2208
01:39:25,259 --> 01:39:27,027
DEVICES THAT ARE BEEN APPROVED

2209
01:39:27,094 --> 01:39:30,964
AND LABELLED FOR ADULTS

2210
01:39:31,031 --> 01:39:33,967
UNPEDIATRICS WITH TEMPERING

2211
01:39:34,034 --> 01:39:35,402
ACTIVITY WITH THOSE USING THEM

2212
01:39:35,469 --> 01:39:36,303
AND TAKING THE RISK ASSOCIATED

2213
01:39:36,370 --> 01:39:43,777
WITH THAT.

2214
01:39:43,844 --> 01:39:44,678
THERE'S ANOTHER CHALLENGE AS WE

2215
01:39:44,745 --> 01:39:46,513
LACK AT THE NUMBER OF DEVICES

2216
01:39:46,580 --> 01:39:48,949
APPROVED LOOK AT THE NUMBER OF

2217
01:39:49,016 --> 01:39:50,617
DEVICES APPROVED FOR LABELLING

2218
01:39:50,684 --> 01:39:57,091
WITH ADULTS AND THOSE FOR

2219
01:39:57,157 --> 01:40:01,028
CHILDREN THIS IS FROM A

2220
01:40:01,095 --> 01:40:04,965
COLLEAGUE AND THE CENTER FOR

2221
01:40:05,032 --> 01:40:09,803
DEVICES AND HEALTH AND THOSE ARE

2222
01:40:09,870 --> 01:40:11,372
NUMBERS ONE A LONG PERIOD OF

2223
01:40:11,438 --> 01:40:13,240
TIME OF ABOUT 10 YEARS OF

2224
01:40:13,307 --> 01:40:17,077
DEVICES APPROVED BY THE FDA AS

2225
01:40:17,144 --> 01:40:17,778
HUMANITARIAN USE DEVICE OR

2226
01:40:17,845 --> 01:40:22,683
MARKET APPROVAL.

2227
01:40:22,750 --> 01:40:25,953
YOU CAN APPRECIATE THEY TEND TO

2228
01:40:26,019 --> 01:40:27,721
GO UP OVER TIME.

2229
01:40:27,788 --> 01:40:30,157
WHILE THE BLUE RELATED TO THE

2230
01:40:30,224 --> 01:40:32,326
PEDIATRIC LABELLING REMAIN

2231
01:40:32,393 --> 01:40:34,928
RELATIVELY FLAT.

2232
01:40:34,995 --> 01:40:37,264
THE FOCUS IS SLOWER.

2233
01:40:37,331 --> 01:40:39,533
IF WE BREAK DOWN THESE TO MORE

2234
01:40:39,600 --> 01:40:41,835
DETAILS THIS IS REALLY SHOWING

2235
01:40:41,902 --> 01:40:45,806
WHERE THE PROBLEM IS.

2236
01:40:45,873 --> 01:40:47,508
IF WE LOOK AT THE PIE CHART

2237
01:40:47,574 --> 01:40:50,477
THERE IS A LARGE PROPORTION OF

2238
01:40:50,544 --> 01:40:53,647
DEVICES APPROVED FOR ADULT

2239
01:40:53,714 --> 01:40:56,583
DEVICES FOR ADULT RECIPIENTS OR

2240
01:40:56,650 --> 01:40:56,884
INDIVIDUALS.

2241
01:40:56,950 --> 01:41:02,022
AND AS WE LOOK AT THE BREAK DOWN

2242
01:41:02,089 --> 01:41:04,024
FOR DIFFERENT AGES TO THE LEFT

2243
01:41:04,091 --> 01:41:06,593
OF THE CURVE TOWARDS THE

2244
01:41:06,660 --> 01:41:12,032
YOUNGEST OF THE PEDIATRIC

2245
01:41:12,099 --> 01:41:12,733
POPULATION --

2246
01:41:12,800 --> 01:41:22,976
[NO AUDIO]

2247
01:41:29,049 --> 01:41:30,617
>> AM I THE ONLY ONE WHERE

2248
01:41:30,684 --> 01:41:31,418
THERE'S DIFFICULTY?

2249
01:41:31,485 --> 01:41:33,720
>> I CAN'T HEAR IT EITHER.

2250
01:41:33,787 --> 01:41:38,826
>> ME AS WELL.

2251
01:41:38,892 --> 01:41:41,562
>> WE LOST ANTONELO.

2252
01:41:41,628 --> 01:41:44,398
>> OH, NO.

2253
01:41:44,465 --> 01:41:45,098
>> WE'LL GIVE HIM A MINUTE TO

2254
01:41:45,165 --> 01:41:55,309
REJOIN.

2255
01:42:00,013 --> 01:42:01,448
>> I LOST CONNECTIVITY.

2256
01:42:01,515 --> 01:42:03,283
CAN YOU HEAR ME NOW?

2257
01:42:03,350 --> 01:42:04,151
>> YOU'RE BACK.

2258
01:42:04,218 --> 01:42:07,087
>> I APOLOGIZE.

2259
01:42:07,154 --> 01:42:08,155
WHERE DID YOU LOSE ME OR WHERE

2260
01:42:08,222 --> 01:42:13,260
DID I LOSE YOU?

2261
01:42:13,327 --> 01:42:22,936
>> THE PIE CHART.

2262
01:42:23,003 --> 01:42:33,514
>> I THINK WE LOST HIM AGAIN.

2263
01:42:34,715 --> 01:42:36,583
>> I'M MESSAGING HIM TO GET THE

2264
01:42:36,650 --> 01:42:37,284
PHONE NUMBER AND WE'LL GO FROM

2265
01:42:37,351 --> 01:42:47,461
THERE.

2266
01:42:55,469 --> 01:42:58,205
>> SORRY.

2267
01:42:58,272 --> 01:42:59,339
I'M HAVING TECHNICAL PROBLEMS.

2268
01:42:59,406 --> 01:43:00,040
WILL YOU SHARE

2269
01:43:00,107 --> 01:43:05,579
I SLIDES SO I DON'T HAVE TO.

2270
01:43:05,646 --> 01:43:06,980
>> YOU CAN TURN OFF YOUR VIDEO

2271
01:43:07,047 --> 01:43:08,582
AS WELL.

2272
01:43:08,649 --> 01:43:08,849
>> THANKS.

2273
01:43:08,916 --> 01:43:10,984
YEAH.

2274
01:43:11,051 --> 01:43:15,255
>> LET ME KNOW NEXT SLIDE.

2275
01:43:15,322 --> 01:43:16,223
>> THANK YOU.

2276
01:43:16,290 --> 01:43:18,125
SO, JUST BRIEFLY SO HE THE

2277
01:43:18,191 --> 01:43:19,960
NUMBER OF DEVICES THAT APPROVED

2278
01:43:20,027 --> 01:43:21,662
FOR ADULTS IS DEFINITELY THE

2279
01:43:21,728 --> 01:43:24,765
MAJORITY YOU CAN SEE ON THE

2280
01:43:24,831 --> 01:43:24,998
YELLOW.

2281
01:43:25,065 --> 01:43:26,667
AS WE MOVE TOWARDS THE LEFT OF

2282
01:43:26,733 --> 01:43:29,236
THE CURVE SO THE YOUNGEST

2283
01:43:29,303 --> 01:43:34,474
PATIENTS THE NUMBER OF DEVICES

2284
01:43:34,541 --> 01:43:36,276
THAT HAVE AN INDICATION IS

2285
01:43:36,343 --> 01:43:36,610
SMALLER.

2286
01:43:36,677 --> 01:43:40,147
AND YOU CAN ALSO INFER THE

2287
01:43:40,213 --> 01:43:43,617
PREADULTS ARE THE ONES THAT

2288
01:43:43,684 --> 01:43:44,985
SOMETIMES GET THE LABELLING WHEN

2289
01:43:45,052 --> 01:43:47,721
AN ADULT DEVICE IS APPROVED

2290
01:43:47,788 --> 01:43:49,957
BECAUSE OF THE SIZE OR

2291
01:43:50,023 --> 01:43:52,492
PHYSIOLOGICAL PARAMETERS ARE NOT

2292
01:43:52,559 --> 01:43:55,662
SO DIFFERENT FROM THOSE OF

2293
01:43:55,729 --> 01:43:55,896
ADULTS.

2294
01:43:55,963 --> 01:44:00,601
IT'S LABELLED PEDIATRIC.

2295
01:44:00,667 --> 01:44:05,739
IT'S A SMALL PORTION OF THE

2296
01:44:05,806 --> 01:44:06,039
POPULATION.

2297
01:44:06,106 --> 01:44:09,943
SO OVER THE YEARS THERE HAVE

2298
01:44:10,010 --> 01:44:15,949
BEEN A NUMBER OF REGULATORY

2299
01:44:16,016 --> 01:44:19,686
RULES AND GUIDELINES THE FDA HAS

2300
01:44:19,753 --> 01:44:26,093
INTRODUCED AS INTERESTING

2301
01:44:26,159 --> 01:44:26,860
MEDICAL DEVICES BECAME MORE

2302
01:44:26,927 --> 01:44:31,031
CENTERED.

2303
01:44:31,098 --> 01:44:35,035
THERE'S AN ACCELERATION IN THE

2304
01:44:35,102 --> 01:44:36,603
RECENT YEARS WITH SOME

2305
01:44:36,670 --> 01:44:38,505
LEGISLATIVE ACTIONS THAT HAVE

2306
01:44:38,572 --> 01:44:40,474
PUT THE FOCUS AND ASK THE FDA

2307
01:44:40,540 --> 01:44:43,877
AND OTHER AGENCIES TO LOOK AT

2308
01:44:43,944 --> 01:44:44,911
PEDIATRIC MEDICAL DEVICES WITH

2309
01:44:44,978 --> 01:44:50,817
MORE ATTENTION.

2310
01:44:50,884 --> 01:44:55,689
THIS IS A HIGH LEVEL OF SOME THE

2311
01:44:55,756 --> 01:44:59,993
KEY THAT HAVE IMPACTED THE

2312
01:45:00,060 --> 01:45:02,529
PEDIATRICS AND WE STARTED WITH A

2313
01:45:02,596 --> 01:45:05,632
REPORT FROM THE INSTITUTE OF

2314
01:45:05,699 --> 01:45:05,899
MEDICINE.

2315
01:45:05,966 --> 01:45:09,302
THE SAME MEDICAL DEVICE FOR

2316
01:45:09,369 --> 01:45:09,569
CHILDREN.

2317
01:45:09,636 --> 01:45:14,708
THAT LED TO SOME CONSENSUS

2318
01:45:14,775 --> 01:45:17,044
DISCUSSIONS THAT LED TO THE

2319
01:45:17,110 --> 01:45:19,846
PEDIATRIC MEDICAL DEVICE SAFETY

2320
01:45:19,913 --> 01:45:23,016
AND IMPROVEMENT ACT

2321
01:45:23,083 --> 01:45:30,657
RE-AUTHORIZED OVER THE PAST

2322
01:45:30,724 --> 01:45:32,392
SEVERAL YEARS AND WITH THE

2323
01:45:32,459 --> 01:45:35,495
MANDATES THERE WAS TO ESTABLISH

2324
01:45:35,562 --> 01:45:37,064
THE PEDIATRICS FOR MEDICAL

2325
01:45:37,130 --> 01:45:40,600
DEVICES AND INCENTIVES AND

2326
01:45:40,667 --> 01:45:42,602
ESTABLISHING PEDIATRIC DEVICE

2327
01:45:42,669 --> 01:45:46,406
CONSORTIA FOCUSSED ON REGULATORY

2328
01:45:46,473 --> 01:45:48,709
AND KNOWN IN THE PEDIATRIC

2329
01:45:48,775 --> 01:45:51,845
MEDICAL DEVICE DEVELOPMENT AND

2330
01:45:51,912 --> 01:45:54,815
ALSO ESTABLISHED THE NIH POINT

2331
01:45:54,881 --> 01:46:00,253
OF CONTACT FOR PEDIATRIC MEDICAL

2332
01:46:00,320 --> 01:46:01,688
DEVICE DEVELOPMENT AND

2333
01:46:01,755 --> 01:46:02,589
LEGISLATION HELD BY NICHD AT THE

2334
01:46:02,656 --> 01:46:06,760
PRESENT TIME.

2335
01:46:06,827 --> 01:46:09,996
BUT DESPITE ALL THOSE REGULATORY

2336
01:46:10,063 --> 01:46:11,465
OR LEGISLATIVE ACTIONS THERE IS

2337
01:46:11,531 --> 01:46:13,567
STILL THIS PROBLEM I SHOWED

2338
01:46:13,633 --> 01:46:24,111
EARLIER HAS NOT BEEN SOLVED.

2339
01:46:28,915 --> 01:46:37,924
AND THERE WAS A PRE-CONSORTIUM

2340
01:46:37,991 --> 01:46:40,327
FOR MEDICAL DEVICES.

2341
01:46:40,393 --> 01:46:44,331
THIS WAS AN EFFORT TO TRY TO

2342
01:46:44,397 --> 01:46:45,799
BRING VARIOUS STAKEHOLDERS FROM

2343
01:46:45,866 --> 01:46:48,335
PUBLIC AND PRIVATE SECTOR TO

2344
01:46:48,401 --> 01:46:51,571
DISCUSS WHAT ARE THE ROAD BLOCKS

2345
01:46:51,638 --> 01:46:55,008
AND WHAT COULD BE POSSIBLE

2346
01:46:55,075 --> 01:47:02,249
STRATEGIES TO PAVE THE WAY FOR

2347
01:47:02,315 --> 01:47:03,283
MEDICAL DEVICE DEVELOPMENT TO

2348
01:47:03,350 --> 01:47:04,751
BRING MORE SOLUTIONS TO THE

2349
01:47:04,818 --> 01:47:10,023
PATIENTS IN NEED.

2350
01:47:10,090 --> 01:47:12,058
THIS EFFORT REACHED ITS HIGHEST

2351
01:47:12,125 --> 01:47:16,163
LEVEL IN FEBRUARY 2021 IN A

2352
01:47:16,229 --> 01:47:18,031
PUBLIC MEETING AND THERE WAS

2353
01:47:18,098 --> 01:47:20,400
CONSENSUS FROM THE COMMUNITY AND

2354
01:47:20,467 --> 01:47:22,335
STAKEHOLDERS WHO PARTICIPATED IN

2355
01:47:22,402 --> 01:47:29,242
THE EFFORT THAT PUT TOGETHER A

2356
01:47:29,309 --> 01:47:31,111
PARTNERSHIP OR CONSORTIUM AS A

2357
01:47:31,178 --> 01:47:36,082
VIABLE OPTION TO HELP THE.

2358
01:47:36,149 --> 01:47:37,784
-- THE PROCESS.

2359
01:47:37,851 --> 01:47:42,989
AT THE NIH WE AND DR. BIANCHI

2360
01:47:43,056 --> 01:47:44,524
PROVIDED THE NICE OVERVIEW OF

2361
01:47:44,591 --> 01:47:49,729
THE EFFORT IN THE PEDIATRIC

2362
01:47:49,796 --> 01:47:56,269
SPACE BY NIH AND ESTABLISHED THE

2363
01:47:56,336 --> 01:47:57,971
NIH RESEARCH CONSORTIUM THAT HAS

2364
01:47:58,038 --> 01:48:00,841
BEEN REALLY HELPING IN

2365
01:48:00,907 --> 01:48:04,144
COORDINATING EFFORTS THAT ARE IN

2366
01:48:04,211 --> 01:48:10,450
THE SPACE AT THE NIH ACROSS THE

2367
01:48:10,517 --> 01:48:10,750
NIH.

2368
01:48:10,817 --> 01:48:16,356
IN 2021, WE ASKED TO PUT

2369
01:48:16,423 --> 01:48:18,758
TOGETHER A SUB GROUP ON DEVICES

2370
01:48:18,825 --> 01:48:26,032
IN AN ATTEMPT TO ENHANCE THE

2371
01:48:26,099 --> 01:48:27,868
COORDINATION WITH NIH IN

2372
01:48:27,934 --> 01:48:33,974
PREPARATION WITH SYNERGIES WITH

2373
01:48:34,040 --> 01:48:40,780
A MORE MEDICAL DEVICES.

2374
01:48:40,847 --> 01:48:42,849
THE ROLE OF NIH WITH THE FIRST

2375
01:48:42,916 --> 01:48:47,821
IN HUMAN OR CLINICAL TRIALS.

2376
01:48:47,888 --> 01:48:49,756
WE FELT AS PART OF THE ECO

2377
01:48:49,823 --> 01:48:55,061
SYSTEM IT WAS INTRINSIC AND WE

2378
01:48:55,128 --> 01:48:58,031
COULD HELP LEVERAGE THE SOURCES

2379
01:48:58,098 --> 01:49:01,134
AVAILABLE BY THE NIH AND

2380
01:49:01,201 --> 01:49:03,570
STRENGTHEN A PARTNERSHIP WITH

2381
01:49:03,637 --> 01:49:04,838
LONG LASTING AND IMPACT IN THE

2382
01:49:04,905 --> 01:49:12,212
FIELD.

2383
01:49:12,279 --> 01:49:15,582
WE HELD A SMALL STAKEHOLDER

2384
01:49:15,649 --> 01:49:21,221
MEETING IN JANUARY 2022.

2385
01:49:21,288 --> 01:49:27,127
AMONG THE HIGHLIGHTS DR. BIANCHI

2386
01:49:27,193 --> 01:49:29,162
SAID WAS THE NEEDS OF PEDIATRIC

2387
01:49:29,229 --> 01:49:34,467
PATIENTS REPRESENTS A PERSISTENT

2388
01:49:34,534 --> 01:49:37,938
AND MAJOR PUBLIC HEALTH PROBLEM.

2389
01:49:38,004 --> 01:49:39,673
AND COLLABORATIVE PLATFORMS TO

2390
01:49:39,739 --> 01:49:44,511
TRY TO OVERCOME THIS AND

2391
01:49:44,577 --> 01:49:45,545
NATIONAL MULTI-STAKEHOLDER

2392
01:49:45,612 --> 01:49:50,884
EFFORT WOULD BE GAME CHANGE.

2393
01:49:50,951 --> 01:49:52,485
WE TOOK IT TO ART AND THAT GAVE

2394
01:49:52,552 --> 01:49:54,888
US THE IMPETUS TO WORK WITH OUR

2395
01:49:54,955 --> 01:49:56,456
OTHER PARTNERS TO TRY AND BRING

2396
01:49:56,523 --> 01:50:03,530
EVERYBODY TOGETHER.

2397
01:50:03,596 --> 01:50:08,768
WE LEVERAGED THE CAPABILITY OF

2398
01:50:08,835 --> 01:50:10,370
THE ORGANIZATION THAT HAS HELPED

2399
01:50:10,437 --> 01:50:15,875
ESTABLISH A NUMBER OF

2400
01:50:15,942 --> 01:50:17,377
PARTNERSHIPS OVER THE YEARS

2401
01:50:17,444 --> 01:50:21,181
INCLUDING BUT NOT LIMITED TO THE

2402
01:50:21,247 --> 01:50:23,049
MAJOR EFFORT THAT LED TO THE

2403
01:50:23,116 --> 01:50:27,420
WORK DURING THE PANDEMIC TO TEST

2404
01:50:27,487 --> 01:50:29,589
NEW TREATMENT AND HELP MITIGATE

2405
01:50:29,656 --> 01:50:38,565
THIS IMPACT OF THE DISEASE.

2406
01:50:38,631 --> 01:50:39,366
THE BEST WE COULD ASK FOR THIS

2407
01:50:39,432 --> 01:50:46,906
TASK.

2408
01:50:46,973 --> 01:50:50,910
AND IT WAS A LONG PROCESS BUT WE

2409
01:50:50,977 --> 01:50:52,312
HAVE GONE THROUGH HOOPS AND

2410
01:50:52,379 --> 01:50:53,179
HOOPS.

2411
01:50:53,246 --> 01:50:56,783
WE WERE ABLE TO CONSOLIDATE

2412
01:50:56,850 --> 01:50:58,018
CONSENSUS FROM DIFFERENT

2413
01:50:58,084 --> 01:50:58,351
STAKEHOLDERS.

2414
01:50:58,418 --> 01:51:02,022
WE WORKED CLOSELY WITH THE FDA,

2415
01:51:02,088 --> 01:51:07,027
WITH OTHER U.S. GOVERNMENT

2416
01:51:07,093 --> 01:51:14,501
AGENCIES AND THROUGH THE WORK OF

2417
01:51:14,567 --> 01:51:19,539
ALMOST TWO YEARS WE WERE ABLE TO

2418
01:51:19,606 --> 01:51:24,611
REALLY GET THROUGH THE PROCESS

2419
01:51:24,677 --> 01:51:26,613
AND LEVERAGE THROUGH THE

2420
01:51:26,679 --> 01:51:29,916
U.S. PARTNERS AN LAUNCHED IN

2421
01:51:29,983 --> 01:51:36,556
SEPTEMBER 2023 THIS EFFORT.

2422
01:51:36,623 --> 01:51:41,227
WE ALSO TRIED TO OBTAIN BROAD

2423
01:51:41,294 --> 01:51:42,962
FEEDBACK THROUGH OUR REQUEST FOR

2424
01:51:43,029 --> 01:51:47,400
INFORMATION AND THE ISSUES THE

2425
01:51:47,467 --> 01:51:48,068
COMMUNITY IDENTIFIED WERE

2426
01:51:48,134 --> 01:51:51,771
MULTI-FOLD AND ALIGNED WITH THE

2427
01:51:51,838 --> 01:51:54,340
NEED TO LOOK AT THE PRODUCT

2428
01:51:54,407 --> 01:51:55,475
DEVELOPMENT, ACCESS TO RESOURCES

2429
01:51:55,542 --> 01:51:57,043
IN FUNDING.

2430
01:51:57,110 --> 01:51:59,879
ACCESS TO THE PATIENTS.

2431
01:51:59,946 --> 01:52:05,285
ACCESS TO MORE STREAMLINED

2432
01:52:05,351 --> 01:52:10,723
REGULATORY PATHWAYS

2433
01:52:10,790 --> 01:52:11,391
REIMBURSEMENT AS WELL.

2434
01:52:11,458 --> 01:52:18,465
A COMPLEXITY OF PROBLEMS THAT

2435
01:52:18,531 --> 01:52:22,802
LEAD TO THE MAIN PROBLEM IN

2436
01:52:22,869 --> 01:52:24,771
DECEMBER LAST YEAR WHERE HE

2437
01:52:24,838 --> 01:52:26,673
LAUNCHED THE DESIGN PHASE

2438
01:52:26,739 --> 01:52:28,475
CHARGED TO DEVELOP A BLUEPRINT

2439
01:52:28,541 --> 01:52:32,045
FOR IMPLEMENTATION THAT SHOULD

2440
01:52:32,112 --> 01:52:32,812
FALL WITHIN ONE OR TWO YEARS

2441
01:52:32,879 --> 01:52:37,283
FROM NOW.

2442
01:52:37,350 --> 01:52:40,386
IT'S BUILT AROUND THE IDEA OF AN

2443
01:52:40,453 --> 01:52:43,089
EFFORT TO BRING THE STAKEHOLDERS

2444
01:52:43,156 --> 01:52:43,389
TOGETHER.

2445
01:52:43,456 --> 01:52:47,794
THE FNIH HAS BEEN RECRUITING THE

2446
01:52:47,861 --> 01:52:50,530
BROADER SECTOR PARTNERS TO

2447
01:52:50,597 --> 01:52:55,635
ENSURE BROAD INCLUSION OF

2448
01:52:55,702 --> 01:52:57,637
DIFFERENT STAKEHOLDERS.

2449
01:52:57,704 --> 01:53:01,341
AND WE'VE HAD A NUMBER OF

2450
01:53:01,407 --> 01:53:01,941
MEETINGS THROUGH THE SIX WORK

2451
01:53:02,008 --> 01:53:04,711
STREAMS.

2452
01:53:04,777 --> 01:53:07,313
THOSE WORK STREAMS ARE CHARGED

2453
01:53:07,380 --> 01:53:10,283
AND FOCUSSED ON DIFFERENT

2454
01:53:10,350 --> 01:53:15,688
ASPECTS OF THE PRODUCT

2455
01:53:15,755 --> 01:53:20,093
DEVELOPMENT.

2456
01:53:20,160 --> 01:53:22,795
WE'RE FOCUSSED ON THE PROCESS TO

2457
01:53:22,862 --> 01:53:25,231
ALLOW INNOVATORS TO GET THROUGH

2458
01:53:25,298 --> 01:53:27,600
THE SYSTEM AND ACCESS RESOURCE

2459
01:53:27,667 --> 01:53:30,036
WILL BE MADE AVAILABLE.

2460
01:53:30,103 --> 01:53:34,507
INVOLVEMENT OF HOSPITALS AND

2461
01:53:34,574 --> 01:53:35,642
DECENTRALIZED CLINICAL TRIAL

2462
01:53:35,708 --> 01:53:40,847
CENTERS TO HELP TEST THOSE

2463
01:53:40,914 --> 01:53:43,583
DEVICES AND HELP GENERATE THE

2464
01:53:43,650 --> 01:53:47,520
APPROVAL FOR REIMBURSEMENT.

2465
01:53:47,587 --> 01:53:48,988
THE WORK STREAM AND WHAT IS

2466
01:53:49,055 --> 01:53:54,260
THERE AND MISSING AND HOW TO TRY

2467
01:53:54,327 --> 01:53:57,764
TO CHANGE THE LANDSCAPE WHICH IS

2468
01:53:57,830 --> 01:53:58,932
MORE CHALLENGING BECAUSE

2469
01:53:58,998 --> 01:54:04,037
REIMBURSEMENT FOR PEDIATRICS ARE

2470
01:54:04,103 --> 01:54:06,206
OFTEN MOSTLY DEPEND ON MEDICAID

2471
01:54:06,272 --> 01:54:09,609
WHICH IS ADMINISTERED AT THE

2472
01:54:09,676 --> 01:54:11,311
STATE LEVEL WHICH MAKES MORE

2473
01:54:11,377 --> 01:54:13,713
COMPLICATED NEGOTIATIONS.

2474
01:54:13,780 --> 01:54:17,150
AND THE REGULATORY WORK STREAMS

2475
01:54:17,217 --> 01:54:23,256
HAS BEEN FOCUSSING ON WHAT CAN

2476
01:54:23,323 --> 01:54:29,896
THE FDA DO TO HELP DEVELOPMENT

2477
01:54:29,963 --> 01:54:34,601
AND THE INNOVATORS TOFIDE THE

2478
01:54:34,667 --> 01:54:38,238
MOST VIABLE WAY TO SUPPORT SUCH

2479
01:54:38,304 --> 01:54:43,309
AN INFRASTRUCTURE THAT PROBABLY

2480
01:54:43,376 --> 01:54:49,148
WILL RELY ON FUNDS AND DEVELOP

2481
01:54:49,215 --> 01:54:50,850
INTO THE SUSTAINABILITY THAT'S

2482
01:54:50,917 --> 01:55:00,627
FUNDAMENTAL FOR THE ENTERPRISE.

2483
01:55:00,693 --> 01:55:03,896
THESE ARE THE CURRENT PARTNERS.

2484
01:55:03,963 --> 01:55:07,133
ON THE NIH SIDE AND THE NATIONAL

2485
01:55:07,200 --> 01:55:10,069
INSTITUTE OF BIO MEDICAL AND

2486
01:55:10,136 --> 01:55:11,070
BIOENGINEERING ARE THE TWO

2487
01:55:11,137 --> 01:55:16,109
LEADING INSTITUTES AND WE HAVE

2488
01:55:16,175 --> 01:55:23,650
GREAT SUPPORT FROM NCI AND NHLBI

2489
01:55:23,716 --> 01:55:26,786
AND NIMS AND NIH AND NIDA.

2490
01:55:26,853 --> 01:55:30,957
NIDA AND THE DEVELOPMENT

2491
01:55:31,024 --> 01:55:34,227
AUTHORITY BARDA IS ALSO HEAVILY

2492
01:55:34,294 --> 01:55:37,363
INVOLVED UNTHIS ENDEAVOR AND I

2493
01:55:37,430 --> 01:55:40,466
ALREADY MENTIONED THE FDA AND

2494
01:55:40,533 --> 01:55:42,802
CENTER FOR DIAGNOSTICS AND

2495
01:55:42,869 --> 01:55:44,570
BIOLOGICAL HELP.

2496
01:55:44,637 --> 01:55:49,776
THERE'S A NUMBER OF PRIVATE

2497
01:55:49,842 --> 01:55:54,681
SECTOR PARTNERS THAT INCLUDE

2498
01:55:54,747 --> 01:55:56,516
CHILDREN'S HOSPITAL AND INDUSTRY

2499
01:55:56,582 --> 01:55:58,985
AND AMERICAN ACADEMY OF

2500
01:55:59,052 --> 01:56:05,191
PEDIATRICS AND A BROAD BASE OF

2501
01:56:05,258 --> 01:56:05,892
STAKEHOLDERS.

2502
01:56:05,958 --> 01:56:07,794
THERE'S ALSO ADDITIONAL

2503
01:56:07,860 --> 01:56:08,628
STAKEHOLDERS IN THE WORK STREAM

2504
01:56:08,695 --> 01:56:16,135
AS SUBJECT MATTER EXPERTS.

2505
01:56:16,202 --> 01:56:21,441
WE ALSO HAVE REPRESENTATION OF

2506
01:56:21,507 --> 01:56:22,975
DIFFERENT DISCUSSIONS.

2507
01:56:23,042 --> 01:56:28,681
THE FOUNDATION FOR THE NIH IS

2508
01:56:28,748 --> 01:56:29,982
CONVENING THIS EFFORT AND THEY

2509
01:56:30,049 --> 01:56:31,451
HAVE THE CENTER FOR REGULATORY

2510
01:56:31,517 --> 01:56:33,219
SCIENCE AS A SUBCONTRACT TO

2511
01:56:33,286 --> 01:56:35,888
CONVENE TWO OF THE WORK STREAMS,

2512
01:56:35,955 --> 01:56:39,892
THE FINANCE AND REGULATORY WORK

2513
01:56:39,959 --> 01:56:41,160
STREAM.

2514
01:56:41,227 --> 01:56:44,897
THIS IS THE TIME LINE WE ARE

2515
01:56:44,964 --> 01:56:45,765
WORKING AGAINST.

2516
01:56:45,832 --> 01:56:49,435
IT'S BEEN QUITE CHALLENGING TO

2517
01:56:49,502 --> 01:56:51,904
KEEP ON TRACK BUT WE'RE DOING

2518
01:56:51,971 --> 01:56:56,809
OUR BEST.

2519
01:56:56,876 --> 01:56:57,977
THERE'S A LOT OF DIFFERENT

2520
01:56:58,044 --> 01:56:59,545
INTEREST AND OPINIONS COMING TO

2521
01:56:59,612 --> 01:57:00,113
THE TABLE.

2522
01:57:00,179 --> 01:57:00,780
THAT'S GOOD.

2523
01:57:00,847 --> 01:57:03,349
IT'S A RICH AND ENGAGED GROUP.

2524
01:57:03,416 --> 01:57:05,051
THE OBJECTIVE OF THE ENDEAVOR IS

2525
01:57:05,118 --> 01:57:10,857
TO COME UP WITH A WHITE PAPER

2526
01:57:10,923 --> 01:57:15,061
THAT SHOULD CAPTURE OPERATIONAL

2527
01:57:15,128 --> 01:57:18,131
MODELS TO ENABLE A STRUCTURE TO

2528
01:57:18,197 --> 01:57:20,867
BE LARGE TOWARDS THE END OF

2529
01:57:20,933 --> 01:57:21,601
2025.

2530
01:57:21,667 --> 01:57:26,839
BUT I WANT TO BE CAUTIOUS ONE

2531
01:57:26,906 --> 01:57:31,544
THE TIME LINE BECAUSE WHERE HE

2532
01:57:31,611 --> 01:57:36,015
SHIFTED IN THE PAST AND WANT TO

2533
01:57:36,082 --> 01:57:37,917
MAKE SURE WE HAVE SOMETHING IN

2534
01:57:37,984 --> 01:57:41,654
PLACE THAT CAN BE READY TO BE

2535
01:57:41,721 --> 01:57:47,593
TESTED WITH SOME PILOT STUDIES.

2536
01:57:47,660 --> 01:57:53,866
SO THAT'S THE ARROW SHOWING THE

2537
01:57:53,933 --> 01:57:57,637
PRODUCT OF THE ENDEAVOR AND

2538
01:57:57,703 --> 01:57:58,704
WE'RE HOPING IT WILL BE THE

2539
01:57:58,771 --> 01:58:02,141
PREMISE FOR THE FINAL STUDIES

2540
01:58:02,208 --> 01:58:07,780
AND IMPLEMENTATION AND THEN HELP

2541
01:58:07,847 --> 01:58:10,216
THE INFRASTRUCTURE BECOME MORE

2542
01:58:10,283 --> 01:58:11,050
INDEPENDENT OVER TIME IN TERMS

2543
01:58:11,117 --> 01:58:13,553
OF STAINSABILITY.

2544
01:58:13,619 --> 01:58:17,557
SUSTAINABILITY.

2545
01:58:17,623 --> 01:58:19,058
IT'S A MULTI-STAKEHOLDER VENUE

2546
01:58:19,125 --> 01:58:20,460
TO ADVANCE THE ECO SYSTEM.

2547
01:58:20,526 --> 01:58:25,731
WE'RE TRYING TO LOOK AT IT FROM

2548
01:58:25,798 --> 01:58:29,001
MULTIPLE ANGLES.

2549
01:58:29,068 --> 01:58:37,043
THERE IS EVIDENCE GENERATION AND

2550
01:58:37,109 --> 01:58:40,179
EDUCATION AND ACCESS TO

2551
01:58:40,246 --> 01:58:45,251
RESOURCES AND ADEQUATE WORKFORCE

2552
01:58:45,318 --> 01:58:49,188
AND CONTRIBUTION OF AND THE

2553
01:58:49,255 --> 01:58:52,058
PURSUED OF THE CENTRALIZED

2554
01:58:52,124 --> 01:58:53,292
CLINICAL TRIALS.

2555
01:58:53,359 --> 01:58:56,329
WE WANT TO DISPATCH THOSE

2556
01:58:56,395 --> 01:58:57,730
DEVICES AND TEST THEM IN THE

2557
01:58:57,797 --> 01:59:02,802
REAL WORLD SETTING.

2558
01:59:02,869 --> 01:59:04,704
ECHOING WHAT DR. SCHRADER WAS

2559
01:59:04,770 --> 01:59:08,407
SAYING AND WE NEED THE DATA AND

2560
01:59:08,474 --> 01:59:11,911
THAT'S SOMETHING WE'RE COGNIZANT

2561
01:59:11,978 --> 01:59:15,081
WE NEED TO FIND THE REAL

2562
01:59:15,147 --> 01:59:15,982
PROBLEMS NOT JUST IN A PROTECTED

2563
01:59:16,048 --> 01:59:23,022
VARIETY.

2564
01:59:23,089 --> 01:59:29,562
THIS IS TEAM WORK AND A

2565
01:59:29,629 --> 01:59:35,134
REPRESENTATION OF THE VARIOUS

2566
01:59:35,201 --> 01:59:39,438
PARTICIPANTS OF THE ENDEAVOR ON

2567
01:59:39,505 --> 01:59:40,640
THE U.S. GOVERNMENT SIDE STATING

2568
01:59:40,706 --> 01:59:42,108
THIS OVER THE LAST COUPLE YEARS.

2569
01:59:42,174 --> 01:59:44,210
I THINK THIS IS MY LAST SLIDE.

2570
01:59:44,277 --> 01:59:44,977
I RUSHED THROUGH.

2571
01:59:45,044 --> 01:59:47,246
I HOPE WE HAVE TIME FOR

2572
01:59:47,313 --> 01:59:47,513
QUESTIONS.

2573
01:59:47,580 --> 01:59:53,452
THANK YOU SO MUCH.

2574
01:59:53,519 --> 01:59:57,523
SORRY FOR THE TECHNICAL

2575
01:59:57,590 --> 01:59:57,857
DIFFICULTIES.

2576
01:59:57,924 --> 01:59:58,925
>> THANK YOU VERY MUCH.

2577
01:59:58,991 --> 02:00:00,459
YOU WENT WITH THE TECHNICAL

2578
02:00:00,526 --> 02:00:02,695
DIFFICULTIES VERY WELL.

2579
02:00:02,762 --> 02:00:13,239
WE HAVE TIME FOR SOME QUESTIONS.

2580
02:00:13,306 --> 02:00:13,639
>> THANK YOU.

2581
02:00:13,706 --> 02:00:16,943
I'M EXCITED ABOUT THE PUBLIC

2582
02:00:17,009 --> 02:00:23,916
PRIVATE PART UNDERSHIP --

2583
02:00:23,983 --> 02:00:25,585
PARTNERSHIP PLAN.

2584
02:00:25,651 --> 02:00:27,219
THAT'S A NEW DIRECTORATE AND I

2585
02:00:27,286 --> 02:00:31,457
THINK IT WOULD BE A GREAT

2586
02:00:31,524 --> 02:00:32,224
OPPORTUNITY TO WORK TOGETHER AS

2587
02:00:32,291 --> 02:00:37,096
WE DO IN OTHER AREAS.

2588
02:00:37,163 --> 02:00:42,802
I'M RUNNING ONE OF THOSE CENTERS

2589
02:00:42,868 --> 02:00:44,170
THAT FOCUS ON PEDIATRIC

2590
02:00:44,236 --> 02:00:45,237
TECHNOLOGY AN IT'S VERY

2591
02:00:45,304 --> 02:00:49,609
IMPORTANT.

2592
02:00:49,675 --> 02:00:53,245
THE OTHER ASPECT IS WE NEED TO

2593
02:00:53,312 --> 02:00:55,047
EDUCATE PEOPLE IN REGULATORY

2594
02:00:55,114 --> 02:01:00,453
SCIENCE IN CONVERSATION WITH THE

2595
02:01:00,519 --> 02:01:02,455
FDA BECAUSE THEY'RE TECHNICALLY

2596
02:01:02,521 --> 02:01:03,689
INTERESTED AND UNDERSTANDING THE

2597
02:01:03,756 --> 02:01:04,290
PEDIATRIC DEVICE.

2598
02:01:04,357 --> 02:01:08,094
WE NEED TO CAPTURE THAT AS WELL.

2599
02:01:08,160 --> 02:01:09,595
OTHERWISE WE WILL HAVE A

2600
02:01:09,662 --> 02:01:11,597
SHORTAGE OF SPECIALISTS AND

2601
02:01:11,664 --> 02:01:13,132
OTHER TYPES OF PROFESSIONALS IN

2602
02:01:13,199 --> 02:01:17,570
THIS AREA.

2603
02:01:17,637 --> 02:01:22,742
AND MY QUESTION IS HOW THIS CAPS

2604
02:01:22,808 --> 02:01:25,444
ON THE NEW PROGRAM WHICH I THINK

2605
02:01:25,511 --> 02:01:31,217
IS A GREAT IDEA.

2606
02:01:31,283 --> 02:01:37,123
THAT COULD BE IT COULD BE A FAST

2607
02:01:37,189 --> 02:01:38,991
TRACK FOR SOME OF THESE IDEAS.

2608
02:01:39,058 --> 02:01:39,692
>> THANK YOU.

2609
02:01:39,759 --> 02:01:40,226
FOR YOUR COMMENTS AND NOR

2610
02:01:40,292 --> 02:01:43,195
QUESTION.

2611
02:01:43,262 --> 02:01:44,230
-- FOR THE QUESTION.

2612
02:01:44,296 --> 02:01:49,368
BRIEFLY, YES, NSF AND OTHER

2613
02:01:49,435 --> 02:01:51,937
WE'RE LENDING OUR HAND AND

2614
02:01:52,004 --> 02:01:53,939
HOPING TO INVOLVE MORE PARTNERS

2615
02:01:54,006 --> 02:01:55,908
IN THE PUBLIC AND PRIVATE

2616
02:01:55,975 --> 02:01:56,175
SECTOR.

2617
02:01:56,242 --> 02:01:59,779
THE MORE -- I MUST SAY, THERE'S

2618
02:01:59,845 --> 02:02:02,014
A GREAT MOMENTUM ON THIS.

2619
02:02:02,081 --> 02:02:03,315
PEOPLE ARE INTERESTED IN

2620
02:02:03,382 --> 02:02:05,718
PARTICIPATING AN ENGAGING.

2621
02:02:05,785 --> 02:02:08,554
WE HAVE OPPORTUNITIES TO

2622
02:02:08,621 --> 02:02:09,689
CONSOLIDATE ALL POSSIBLE

2623
02:02:09,755 --> 02:02:10,723
RESOURCES.

2624
02:02:10,790 --> 02:02:14,093
THANK YOU FOR POINTING US IN THE

2625
02:02:14,160 --> 02:02:16,228
NSF RESOURCES.

2626
02:02:16,295 --> 02:02:17,663
REGULATORY SCIENCES.

2627
02:02:17,730 --> 02:02:21,567
THE FDA IS ACTIVELY INVOLVED IS

2628
02:02:21,634 --> 02:02:23,302
AND THERE'S A ROLE AS WELL AS

2629
02:02:23,369 --> 02:02:27,907
BUT WE ARE FULLY AWARE WE NEED

2630
02:02:27,973 --> 02:02:29,675
SPECIFIC FOCUS AND THE FDA'S

2631
02:02:29,742 --> 02:02:34,914
ALSO WORKING ON INCREASING THE

2632
02:02:34,980 --> 02:02:37,016
WORKFORCE OF PEDIATRIC

2633
02:02:37,083 --> 02:02:39,552
PHYSICIANS AND SURGEONS THAT CAN

2634
02:02:39,618 --> 02:02:42,021
HELP WITH PEDIATRIC MEDICAL

2635
02:02:42,088 --> 02:02:44,990
DEVICES THAT OTHERWISE WOULD BE

2636
02:02:45,057 --> 02:02:46,959
MISTREATED OR MISINTERPRETED BY

2637
02:02:47,026 --> 02:02:50,830
THOSE THAT DON'T UNDERSTAND THE

2638
02:02:50,896 --> 02:02:53,365
PATIENT POPULATIONS AT STAKE.

2639
02:02:53,432 --> 02:02:55,234
REGARDING THE UPTAKE, WE HAVE A

2640
02:02:55,301 --> 02:02:57,470
NUMBER OF RESOURCES AND PROGRAMS

2641
02:02:57,536 --> 02:02:58,204
THAT ALREADY EXIST.

2642
02:02:58,270 --> 02:03:03,743
WE DON'T NEED TO REBUILD THE

2643
02:03:03,809 --> 02:03:03,943
WHEEL.

2644
02:03:04,009 --> 02:03:07,446
WE'RE THINKING TO WORK ON

2645
02:03:07,513 --> 02:03:10,015
INTEGRATING AND COORDINATING

2646
02:03:10,082 --> 02:03:14,286
EXISTING RESOURCES TO BE JUMP

2647
02:03:14,353 --> 02:03:18,591
STARTED SO THERE'S A SOLUTION

2648
02:03:18,657 --> 02:03:21,694
THAT CAN BENEFIT FROM THE TYPE

2649
02:03:21,761 --> 02:03:22,228
OF SUPPORT.

2650
02:03:22,294 --> 02:03:25,231
I'M A GREAT SUPPORTER OF THOSE

2651
02:03:25,297 --> 02:03:27,500
STRUCTURES THAT NOT ONLY PROVIDE

2652
02:03:27,566 --> 02:03:28,501
FINANCIAL SUPPORT TO PRODUCT

2653
02:03:28,567 --> 02:03:32,071
DEVELOPMENT BUT HAVE THE

2654
02:03:32,138 --> 02:03:35,741
MENTORING AND HAVE CONSULTORSHIP

2655
02:03:35,808 --> 02:03:37,643
ON THE REIMBURSEMENT AND

2656
02:03:37,710 --> 02:03:38,010
MARKETING.

2657
02:03:38,077 --> 02:03:42,715
THIS IS A WAY TO FILL THE GAP

2658
02:03:42,782 --> 02:03:44,717
AND HELP MORE SOLUTIONS TO GET

2659
02:03:44,784 --> 02:03:48,420
FROM IDEATION TO THE PATIENTS

2660
02:03:48,487 --> 02:03:49,021
MORE SUCCESSFULLY THAN IN THE

2661
02:03:49,088 --> 02:03:59,198
PAST.

2662
02:04:05,004 --> 02:04:06,572
>> TWO MORE QUESTIONS.

2663
02:04:06,639 --> 02:04:09,441
>> THANK YOU FOR THE INFORMATIVE

2664
02:04:09,508 --> 02:04:14,146
TALK BUT I HAVE A CLARIFICATION.

2665
02:04:14,213 --> 02:04:19,819
IN YOUR GRAPHS WHEN YOU SHOW THE

2666
02:04:19,885 --> 02:04:21,987
REGULATORY SUCCESS OF PEDIATRIC

2667
02:04:22,054 --> 02:04:23,255
DEVICES IT WOULD BE USEFUL TO

2668
02:04:23,322 --> 02:04:27,359
HAVE A BREAK DOWN AS TO THE FDA

2669
02:04:27,426 --> 02:04:30,796
CLASS BECAUSE CLASS 1 AND CLASS

2670
02:04:30,863 --> 02:04:35,868
3 ARE UNIVERSES A PART.

2671
02:04:35,935 --> 02:04:38,003
THE ENTIRE EVERYTHING IS

2672
02:04:38,070 --> 02:04:38,270
DIFFERENT.

2673
02:04:38,337 --> 02:04:40,039
IT WOULD IMPORTANT TO SEE WHERE

2674
02:04:40,105 --> 02:04:45,044
THE OPPORTUNITIES COULD BE

2675
02:04:45,110 --> 02:04:46,278
THERE.

2676
02:04:46,345 --> 02:04:48,280
SECOND AND I WOULD LIKE TO

2677
02:04:48,347 --> 02:04:50,149
UNDERSTAND ONCE THE SYSTEM SIN

2678
02:04:50,216 --> 02:04:52,284
PLACE, WHAT WILL IT ACTUALLY DO

2679
02:04:52,351 --> 02:04:55,621
AND HOW IT WILL INTERACT WITH

2680
02:04:55,688 --> 02:05:02,928
THE SBIR PROGRAM.

2681
02:05:02,995 --> 02:05:06,332
>> I THINK YOU POINTED TO IT.

2682
02:05:06,398 --> 02:05:07,633
WE ARE TALKING ABOUT BEFORE

2683
02:05:07,700 --> 02:05:12,972
RANGE OF AGES AND DEVICES FROM

2684
02:05:13,038 --> 02:05:15,808
AN ALGORITHM TO IMPLANTABLE

2685
02:05:15,875 --> 02:05:16,342
DEVICE AND EVERYTHING IN

2686
02:05:16,408 --> 02:05:19,578
BETWEEN.

2687
02:05:19,645 --> 02:05:21,247
WE'LL WORK ON THAT.

2688
02:05:21,313 --> 02:05:23,015
PEDIATRIC MEDICAL DEVICES ARE

2689
02:05:23,082 --> 02:05:23,949
REGULATED AS MEDICAL DEVICES IN

2690
02:05:24,016 --> 02:05:28,854
GENERAL.

2691
02:05:28,921 --> 02:05:34,059
WE NEED THE EXPERTISE AND THE

2692
02:05:34,126 --> 02:05:36,362
WAY FOR THE PATIENT POPULATIONS

2693
02:05:36,428 --> 02:05:38,631
AND TRYING TO WORK WITH

2694
02:05:38,697 --> 02:05:41,066
REGULATORS TO ENSURE THOSE

2695
02:05:41,133 --> 02:05:42,902
BECOME AVAILABLE AND THERE ARE

2696
02:05:42,968 --> 02:05:44,036
EFFORTS AND PROGRAMS THAT ARE

2697
02:05:44,103 --> 02:05:47,740
ALREADY IN PLACE THAT COULD BE

2698
02:05:47,806 --> 02:05:49,742
POTENTIATED AND EMPHASIZED TO

2699
02:05:49,808 --> 02:05:51,610
HELP INNOVATORS WHO HAVE AN

2700
02:05:51,677 --> 02:05:53,445
INTEREST IN THE PEDIATRIC

2701
02:05:53,512 --> 02:05:57,182
MEDICAL DEVICE DEVELOPMENT TO

2702
02:05:57,249 --> 02:06:06,759
GET ACCESS AND GUIDANCE.

2703
02:06:06,825 --> 02:06:11,297
THEN YOU EMBARK IN THE RABBIT

2704
02:06:11,363 --> 02:06:11,497
HOLE.

2705
02:06:11,563 --> 02:06:14,867
>> SO IF IT'S A CLASS 1 DEVICE

2706
02:06:14,934 --> 02:06:20,472
THAT IS 510K ACCEPT, IT COULD

2707
02:06:20,539 --> 02:06:22,975
ESSENTIALLY BE MARKETED AS A

2708
02:06:23,042 --> 02:06:23,142
TOY.

2709
02:06:23,208 --> 02:06:28,380
THERE'S HUGE TONIGHT THIS.

2710
02:06:28,447 --> 02:06:31,383
IT'S IMPORTANT TO UNDERSTAND

2711
02:06:31,450 --> 02:06:33,452
WHAT CLASS IT COULD GO INTO.

2712
02:06:33,519 --> 02:06:34,586
IF IT'S CLASS 1 THAT PROBLEM

2713
02:06:34,653 --> 02:06:40,326
DISAPPEARS.

2714
02:06:40,392 --> 02:06:48,734
IN TERMS OF INTERACTION, HOW

2715
02:06:48,801 --> 02:06:59,345
WELL IT APPROACH AND COMPLEMENT

2716
02:07:02,014 --> 02:07:02,514
THE SBIR.

2717
02:07:02,581 --> 02:07:04,516
>> I'M NOT IN THE POSITION TO

2718
02:07:04,583 --> 02:07:10,723
TELL YOU IT'S THE FINAL PRODUCT.

2719
02:07:10,789 --> 02:07:18,464
YOU CAN ENVISION INNOVATORS WHO

2720
02:07:18,530 --> 02:07:20,733
GET SUPPORT IF THE STRUCTURE IS

2721
02:07:20,799 --> 02:07:23,202
WELL EQUIPPED TO HELP THE

2722
02:07:23,268 --> 02:07:25,704
EVIDENCE GENERATION AND TAP INTO

2723
02:07:25,771 --> 02:07:28,273
THE INFRASTRUCTURE AND HAVE AN

2724
02:07:28,340 --> 02:07:31,243
EASIER ACCESS TO THE PATIENT

2725
02:07:31,310 --> 02:07:34,413
POPULATION AND EXPERTISE TO RUN

2726
02:07:34,480 --> 02:07:37,549
THE TRIAL SO THIS WILL FOR

2727
02:07:37,616 --> 02:07:39,518
COMPANIES TIME AND MONEY

2728
02:07:39,585 --> 02:07:41,620
INTEREST ARE THE BIGGEST

2729
02:07:41,687 --> 02:07:42,054
OBSTACLES.

2730
02:07:42,121 --> 02:07:44,156
IF WE CAN SHORTEN THE TIME THEY

2731
02:07:44,223 --> 02:07:46,025
CAN JUMP START TO A STRUCTURE

2732
02:07:46,091 --> 02:07:49,328
THAT HAS PROTOCOLS THAT ARE

2733
02:07:49,395 --> 02:07:50,596
STANDARDIZED AND THERE ARE WAYS

2734
02:07:50,662 --> 02:07:51,897
OF COLLECTING THE DATA AND

2735
02:07:51,964 --> 02:07:57,369
PREPARING THE PACKAGE FOR THE

2736
02:07:57,436 --> 02:08:03,475
FDA APPROVAL WITH EXCELLENT

2737
02:08:03,542 --> 02:08:08,814
QUALITY SO EVERYTHING IS GOING

2738
02:08:08,881 --> 02:08:12,051
TO SHORTEN THE TIME FROM SEEKING

2739
02:08:12,117 --> 02:08:14,219
SUBMISSION TO THE FDA AND

2740
02:08:14,286 --> 02:08:16,021
THROUGH APPROVAL.

2741
02:08:16,088 --> 02:08:18,490
THIS IS ONE OF THE POSSIBLE

2742
02:08:18,557 --> 02:08:20,092
VENUES.

2743
02:08:20,159 --> 02:08:24,463
WE'RE HOPING BY CREATING AND

2744
02:08:24,530 --> 02:08:26,432
CONSOLIDATING COORDINATION AND

2745
02:08:26,498 --> 02:08:27,299
EXISTING INFRASTRUCTURE WE CAN

2746
02:08:27,366 --> 02:08:30,169
HELP INNOVATORS AT ALL STAGE OF

2747
02:08:30,235 --> 02:08:32,304
OF THE PRODUCT DEVELOPMENT SO

2748
02:08:32,371 --> 02:08:38,077
THEY WILL FIND THE RIGHT SUPPORT

2749
02:08:38,143 --> 02:08:39,111
DEPENDING ON THE NEED WHEN THEY

2750
02:08:39,178 --> 02:08:46,885
APPROACH THE INFRASTRUCTURE.

2751
02:08:46,952 --> 02:08:51,190
>> THANK YOU, MICHELLE.

2752
02:08:51,256 --> 02:08:52,157
>> THANK YOU FOR THAT

2753
02:08:52,224 --> 02:08:52,491
PRESENTATION.

2754
02:08:52,558 --> 02:08:54,860
I HAVE A COUPLE QUESTIONS OR

2755
02:08:54,927 --> 02:08:55,227
CLARIFICATIONS.

2756
02:08:55,294 --> 02:08:56,395
ONE IS A CLARIFICATION.

2757
02:08:56,462 --> 02:09:02,568
THE FIRST IS IN TERMS OF THE

2758
02:09:02,634 --> 02:09:03,535
NUMBERS YOU'RE PRESENTING.

2759
02:09:03,602 --> 02:09:05,270
IT'S NOT THAT PEOPLE ARE NOT

2760
02:09:05,337 --> 02:09:07,573
TRYING TO INNOVATE IN THE

2761
02:09:07,639 --> 02:09:10,075
MEDICAL DEVICE PEDIATRIC SPACE.

2762
02:09:10,142 --> 02:09:11,677
IT'S THAT THE PROBLEM YOU'RE

2763
02:09:11,743 --> 02:09:14,480
SEEING IS THAT THEY'RE NOT BEING

2764
02:09:14,546 --> 02:09:18,217
SUCCESSFUL IN TERMS OF GETTING

2765
02:09:18,283 --> 02:09:20,886
FDA APPROVAL IF THEY'RE CLASS 2

2766
02:09:20,953 --> 02:09:21,120
DEVICE?

2767
02:09:21,186 --> 02:09:27,893
I WANT TO CLARIFY.

2768
02:09:27,960 --> 02:09:29,628
>> IT'S MULTI-FOLD AND THIS IS

2769
02:09:29,695 --> 02:09:31,864
HELPING ME TO CONVEY THE MESSAGE

2770
02:09:31,930 --> 02:09:33,132
BETTER IN THE FUTURE AND BREAK

2771
02:09:33,198 --> 02:09:34,633
DOWN THE DATA.

2772
02:09:34,700 --> 02:09:39,238
DEFINITELY, THERE IS A PROBLEM

2773
02:09:39,304 --> 02:09:40,372
IN NOT GETTING THROUGH THERE'S A

2774
02:09:40,439 --> 02:09:45,978
PROBLEM OF AN AWARENESS YOU NEED

2775
02:09:46,044 --> 02:09:56,788
TO START THINK IING YOU NEED YO

2776
02:09:58,323 --> 02:10:00,125
NEED TO SEE IF THE PATIENTS WILL

2777
02:10:00,192 --> 02:10:01,426
ACCEPT SUCH A SOLUTION.

2778
02:10:01,493 --> 02:10:02,961
IS THE REGULATORY AGENCY AWARE

2779
02:10:03,028 --> 02:10:05,898
OF SUCH A SOLUTION AND HOW DO

2780
02:10:05,964 --> 02:10:08,400
THEY CONSIDER WHAT PATH SHOULD I

2781
02:10:08,467 --> 02:10:12,971
EMBARK FOR REGULATORY APPROVAL.

2782
02:10:13,038 --> 02:10:16,675
IT'S A CLASS 1 OR 2 OR THERE IS

2783
02:10:16,742 --> 02:10:19,811
ALREADY SOMETHING THAT CAN

2784
02:10:19,878 --> 02:10:23,015
SIMPLIFY MY APPROVAL PROCESS AND

2785
02:10:23,081 --> 02:10:23,549
BUILD THE WHOLE PATH FOR

2786
02:10:23,615 --> 02:10:32,991
EVIDENCE.

2787
02:10:33,058 --> 02:10:34,726
AND IF THERE'S APPROVAL NO ONE

2788
02:10:34,793 --> 02:10:36,828
WILL USE IT BECAUSE THERE'S NO

2789
02:10:36,895 --> 02:10:42,968
WAY TO MITIGATE THE COST YOU ARE

2790
02:10:43,035 --> 02:10:44,503
SPINNING THE WHEEL.

2791
02:10:44,570 --> 02:10:46,238
IF WE CAN BRING TOGETHER THE

2792
02:10:46,305 --> 02:10:47,706
COLLECTIVE WISDOM AND RESOURCES

2793
02:10:47,773 --> 02:10:51,643
AND TRY TO HELP WE'RE

2794
02:10:51,710 --> 02:10:53,078
CONSIDERING A LOT OF THINGS.

2795
02:10:53,145 --> 02:10:54,179
WE'RE CONSIDERING IS THERE A WAY

2796
02:10:54,246 --> 02:10:58,150
OF CREATING INCENTIVES.

2797
02:10:58,217 --> 02:11:03,255
IN THE DRUG SPACE THERE'S BEEN

2798
02:11:03,322 --> 02:11:10,629
LEGISLATIVE ACTIONS TO TRY AND

2799
02:11:10,696 --> 02:11:13,465
PUSH INDUSTRY TO TEST TO LABEL

2800
02:11:13,532 --> 02:11:15,968
THEM FOR PEDIATRICS AND GETTING

2801
02:11:16,034 --> 02:11:21,907
A LONGER LIFE FOR THE PATENTS

2802
02:11:21,974 --> 02:11:26,044
AND OTHER INCENTIVES.

2803
02:11:26,111 --> 02:11:28,113
IT'S DIFFICULT TO IMPLEMENT

2804
02:11:28,180 --> 02:11:33,018
INTERVENTIONS WE NEED TO THINK

2805
02:11:33,085 --> 02:11:37,322
AND HERE IN A PREMATURE PHASE

2806
02:11:37,389 --> 02:11:38,724
BECAUSE WE'RE IN THE DISCUSSION

2807
02:11:38,790 --> 02:11:41,393
PHASE BUT WE THINK WHAT CAN WE

2808
02:11:41,460 --> 02:11:41,693
DO.

2809
02:11:41,760 --> 02:11:42,928
IS THERE ANYTHING AT THE

2810
02:11:42,995 --> 02:11:46,131
LEGISLATE YOU HAVE LEVEL OR WHAT

2811
02:11:46,198 --> 02:11:47,132
CAN WE CHANGE.

2812
02:11:47,199 --> 02:11:51,370
MAYBE IT'S NOT SOMETHING WE CAN

2813
02:11:51,436 --> 02:11:52,271
IMPLEMENT IMMEDIATELY BUT CAN

2814
02:11:52,337 --> 02:11:55,107
COME DOWN THE ROAD TO START

2815
02:11:55,173 --> 02:11:56,642
BUILDING SOMETHING AND HOPING

2816
02:11:56,708 --> 02:12:00,479
THAT THE SHIFT IN CULTURE AND

2817
02:12:00,545 --> 02:12:02,314
CHANGES THAT MAY COME CAN

2818
02:12:02,381 --> 02:12:05,083
AMPLIFY THE IMPACT BUT BRING THE

2819
02:12:05,150 --> 02:12:09,721
WHOLE SYSTEM TOGETHER TO HAVE

2820
02:12:09,788 --> 02:12:11,256
THE POWER AND STRENGTH.

2821
02:12:11,323 --> 02:12:13,425
RIGHT NOW IT'S SCATTERED AND

2822
02:12:13,492 --> 02:12:14,426
UNFORTUNATELY IT'S NOT HELPING

2823
02:12:14,493 --> 02:12:16,862
THE GOAL OF BRINGING SOLUTION TO

2824
02:12:16,928 --> 02:12:22,200
OUR PATIENTS IN NEED.

2825
02:12:22,267 --> 02:12:25,103
>> JUST TO CLARIFY SOME YOU

2826
02:12:25,170 --> 02:12:26,872
MENTIONED IS THE WHITE PAPER.

2827
02:12:26,938 --> 02:12:29,474
WILL IT BE AVAILABLE TO EVERYONE

2828
02:12:29,541 --> 02:12:31,343
AS IN MAYBE IT BRINGS TOGETHER

2829
02:12:31,410 --> 02:12:36,381
THE COLLECTIVE KNOWLEDGE ABOUT

2830
02:12:36,448 --> 02:12:38,450
THE PROCESS AND FOLKS IN THE

2831
02:12:38,517 --> 02:12:40,018
SPACE MAYBE THEY START DOING

2832
02:12:40,085 --> 02:12:42,254
RESEARCH AND NOW WANT TO

2833
02:12:42,321 --> 02:12:43,588
TRANSLATE OR IMPLEMENT.

2834
02:12:43,655 --> 02:12:45,524
IS THAT WHITE PAPER GOING TO BE

2835
02:12:45,590 --> 02:12:46,258
AVAILABLE?

2836
02:12:46,325 --> 02:12:47,693
>> IT'S AN INTERNAL DOCUMENT.

2837
02:12:47,759 --> 02:12:51,897
IT'S GOING TO BE THE DRAFT OF A

2838
02:12:51,963 --> 02:12:53,799
BLUEPRINT AND IN THE MONTHS

2839
02:12:53,865 --> 02:12:55,000
FOLLOWING THE FINALIZATION OF

2840
02:12:55,067 --> 02:13:00,305
THE WHILE THE PAPER WE WILL WORK

2841
02:13:00,372 --> 02:13:02,607
TO TRY AND HAVE A BLUEPRINT FOR

2842
02:13:02,674 --> 02:13:06,478
THE RESOURCES AVAILABLE AT THE

2843
02:13:06,545 --> 02:13:08,280
TIME AND PART OF THE DOCUMENTS

2844
02:13:08,347 --> 02:13:09,047
WILL BE IN THE PUBLIC.

2845
02:13:09,114 --> 02:13:13,251
THE BENEFIT FOR THE COMMUNITY

2846
02:13:13,318 --> 02:13:14,553
WILL BE ONCE THE INFRASTRUCTURE

2847
02:13:14,619 --> 02:13:21,360
IS BUILT AND START SOLICITING

2848
02:13:21,426 --> 02:13:22,427
ENGAGEMENT WITH THOSE SMALL

2849
02:13:22,494 --> 02:13:23,528
COMPANIES THAT MAY NEED ACCESS

2850
02:13:23,595 --> 02:13:24,563
TO THE RESOURCES.

2851
02:13:24,629 --> 02:13:33,338
IT'S GOING TO BE INTEGRATED.

2852
02:13:33,405 --> 02:13:34,373
AND YOU CAN MAXIMIZE THE IMPACT

2853
02:13:34,439 --> 02:13:41,847
DOWN THE ROAD.

2854
02:13:41,913 --> 02:13:45,817
>> START WRAPPING, MICHELLE.

2855
02:13:45,884 --> 02:13:48,253
I WAS GOING TO MAKE MY LAST

2856
02:13:48,320 --> 02:13:48,520
POINT.

2857
02:13:48,587 --> 02:13:50,889
THE CHILDREN'S HOSPITAL OF

2858
02:13:50,956 --> 02:13:52,023
PHILADELPHIA HOW DO YOU A

2859
02:13:52,090 --> 02:13:57,929
HOSPITAL IF THEY HAVE LIKE A PCI

2860
02:13:57,996 --> 02:13:59,331
INNOVATION CENTER GET INVOLVED

2861
02:13:59,398 --> 02:14:01,933
IN BEING AN APART OF THE

2862
02:14:02,000 --> 02:14:03,168
PUBLIC-PRIVATE PARTNERSHIP IS MY

2863
02:14:03,235 --> 02:14:03,635
LAST QUESTION.

2864
02:14:03,702 --> 02:14:06,304
>> THERE ARE WAYS TO ENGAGE.

2865
02:14:06,371 --> 02:14:11,610
THEY CAN REACH THE FOUNDATION

2866
02:14:11,676 --> 02:14:17,816
FOR THE NIH AND HAVE A PUBLIC

2867
02:14:17,883 --> 02:14:18,984
SIDE.

2868
02:14:19,050 --> 02:14:19,718
ONCE WE ESTABLISH THE

2869
02:14:19,785 --> 02:14:22,387
INFRASTRUCTURE THERE WILL BE THE

2870
02:14:22,454 --> 02:14:23,989
NEED TO MAYBE COMPETE AND

2871
02:14:24,055 --> 02:14:27,292
EVERYBODY WILL HAVE AN

2872
02:14:27,359 --> 02:14:28,393
OPPORTUNITY TO COMPETE AND BE

2873
02:14:28,460 --> 02:14:30,429
PART OF IT MAYBE IN DIFFERENT

2874
02:14:30,495 --> 02:14:30,662
STAGES.

2875
02:14:30,729 --> 02:14:33,632
I'LL STOP.

2876
02:14:33,698 --> 02:14:37,169
>> VERY STIMULATING AND TIMELY

2877
02:14:37,235 --> 02:14:37,469
DISCUSSION.

2878
02:14:37,536 --> 02:14:39,871
WE HAVE COLLABORATIVE WORK

2879
02:14:39,938 --> 02:14:40,705
AHEAD.

2880
02:14:40,772 --> 02:14:41,373
WE'RE A LITTLE BEHIND SCHEDULE

2881
02:14:41,440 --> 02:14:51,583
WHICH MEANS YOU'LL HAVE TO SKIP

2882
02:14:51,650 --> 02:14:53,652
DESS

2883
02:14:53,718 --> 02:14:53,885
DESSERT.

2884
02:14:53,952 --> 02:14:55,554
WE'LL HAVE MORE ON THE ARPA-H

2885
02:14:55,620 --> 02:15:01,026
PROGRAM FROM CAL ROBERTS AND

2886
02:15:01,092 --> 02:15:02,661
THERESA WILL TALK ABOUT THE

2887
02:15:02,727 --> 02:15:04,229
REQUEST FOR INFORMATION.

2888
02:15:04,296 --> 02:15:07,199
WE'LL HEAR REMARKS FROM THE

2889
02:15:07,265 --> 02:15:08,934
THREE MEMBERS LEAVING THE BOARD

2890
02:15:09,000 --> 02:15:11,903
AND FINISH UP BY LOOK FOR

2891
02:15:11,970 --> 02:15:14,172
COMMENTS AND INPUT FOR WHAT YOU

2892
02:15:14,239 --> 02:15:16,842
WANT ON FUTURE BOARD MEETINGS.

2893
02:15:16,908 --> 02:15:18,877
WE'LL HAVE TO HAVE AN

2894
02:15:18,944 --> 02:15:19,411
ABBREVIATED LUNCH.

2895
02:15:19,478 --> 02:15:24,082
JUST HALF AN HOUR AT THIS POINT.

2896
02:15:24,149 --> 02:15:26,651
12:45 EASTERN TIME WE'LL

2897
02:15:26,718 --> 02:15:26,918
RECONVENE.

2898
02:15:26,985 --> 02:15:29,621
GRAB SOMETHING QUICK AND STRETCH

2899
02:15:29,688 --> 02:15:35,060
AND PLEASE LEAVE YOUR CONNECTION

2900
02:15:35,126 --> 02:15:36,661
ON AND WE'LL LOOK FORWARD IT

2901
02:15:36,728 --> 02:15:37,562
SEEING YOU IN 30 MINUTES THERE

2902
02:15:37,629 --> 02:15:37,729
NOW.

2903
02:15:37,796 --> 02:15:57,749
THANK YOU.

2904
02:15:57,816 --> 02:16:01,186
I WILL INTRODUCE DR. ROBERTS.

2905
02:16:01,253 --> 02:16:01,920
>> THANK YOU.

2906
02:16:01,987 --> 02:16:06,258
>> DR. CALVIN ROBERTS, MY

2907
02:16:06,324 --> 02:16:08,460
COLLEAGUE HERE JOINED THE

2908
02:16:08,527 --> 02:16:09,494
ADVANCED RESEARCH PROJECTS

2909
02:16:09,561 --> 02:16:15,066
AGENCY FOR HEALTH, ARPA-H IN

2910
02:16:15,133 --> 02:16:16,034
SEPTEMBER 2023.

2911
02:16:16,101 --> 02:16:22,007
AND HE JOINED IT FROM THE LIGHT

2912
02:16:22,073 --> 02:16:24,309
HOUSE GUILD INTERNATIONAL THE

2913
02:16:24,376 --> 02:16:28,113
CHIEF EXECUTIVE OFFICER IT'S A

2914
02:16:28,179 --> 02:16:29,080
NON-FOR PROFIT ORGANIZATION THAT

2915
02:16:29,147 --> 02:16:30,515
PROVIDES SERVICES FOR PEOPLE WHO

2916
02:16:30,582 --> 02:16:33,552
ARE BLIND, VISUALLY IMPAIRED

2917
02:16:33,618 --> 02:16:34,786
WHICH IS INTERESTING YANG GROUND

2918
02:16:34,853 --> 02:16:38,623
FOR RUNNING THE ARPA-H PROGRAM.

2919
02:16:38,690 --> 02:16:39,925
BECAUSE OF POTENTIAL OVERLAP

2920
02:16:39,991 --> 02:16:42,928
WITH OUR CENTER AND ACTIVITIES

2921
02:16:42,994 --> 02:16:44,329
WE THOUGHT THERE'D BE NATURAL

2922
02:16:44,396 --> 02:16:45,497
SYNERGIES AND WOULD BE A GOOD

2923
02:16:45,564 --> 02:16:49,134
TIME FOR DISCUSSION.

2924
02:16:49,200 --> 02:16:51,703
I APPRECIATE CAL WAS ABLE TO FIT

2925
02:16:51,770 --> 02:16:53,438
THIS IN HIS SCHEDULE.

2926
02:16:53,505 --> 02:16:54,706
OVER TO YOU.

2927
02:16:54,773 --> 02:16:56,207
>> THANK YOU, I APPRECIATE THAT.

2928
02:16:56,274 --> 02:16:57,976
THANK YOU ALL FOR JOINING TODAY.

2929
02:16:58,043 --> 02:17:02,380
SO HERE'S MY PLAN.

2930
02:17:02,447 --> 02:17:05,216
I WOULD LIKE TO FIRST GIVE YOU

2931
02:17:05,283 --> 02:17:06,618
BACKGROUND ON ARPA-H.

2932
02:17:06,685 --> 02:17:09,054
SOME PEOPLE KNOW AND SOME PEOPLE

2933
02:17:09,120 --> 02:17:09,921
NEVER HEARD OF ARPA-H.

2934
02:17:09,988 --> 02:17:13,191
THEN I WANT TO GIVE YOU A COUPLE

2935
02:17:13,258 --> 02:17:15,193
EXAMPLES OF THE TYPE OF PROGRAMS

2936
02:17:15,260 --> 02:17:18,463
THAT ARE BEING WORKED ON AT

2937
02:17:18,530 --> 02:17:18,730
ARPA-H.

2938
02:17:18,797 --> 02:17:19,898
THEN TALK TO YOU A LITTLE MORE

2939
02:17:19,965 --> 02:17:21,766
IN DEPTH ABOUT MY PROGRAM ABOUT

2940
02:17:21,833 --> 02:17:26,171
WHAT I'M WORKING ON AND THEN A

2941
02:17:26,237 --> 02:17:28,273
COUPLE OF FINAL COMMENTS ABOUT

2942
02:17:28,340 --> 02:17:29,140
THE FUTURE.

2943
02:17:29,207 --> 02:17:31,343
WITH THAT, I'M GOING TO GO AHEAD

2944
02:17:31,409 --> 02:17:41,753
AND SHARE MY SCREEN.

2945
02:18:08,613 --> 02:18:12,217
ARPA-H IS THE ADVANCED RESEARCH

2946
02:18:12,283 --> 02:18:14,319
PROJECT AGENCY FOR HEALTH.

2947
02:18:14,386 --> 02:18:14,619
ARPA-H.

2948
02:18:14,686 --> 02:18:16,021
SOME PEOPLE SAY ARPA-H SOUNDS

2949
02:18:16,087 --> 02:18:19,891
LIKE DARPA.

2950
02:18:19,958 --> 02:18:21,059
DOES THIS HAVE ANYTHING TO DO

2951
02:18:21,126 --> 02:18:24,295
WITH DARPA.

2952
02:18:24,362 --> 02:18:27,499
THE ANSWER IS THIS IS CREATED IN

2953
02:18:27,565 --> 02:18:29,701
THE IMAGE OF DARPA.

2954
02:18:29,768 --> 02:18:35,006
SO TO TRY TO BE ABLE TO DO FOR

2955
02:18:35,073 --> 02:18:36,675
HEALTH SOME GREAT THINGS DARPA

2956
02:18:36,741 --> 02:18:38,943
HAS BEEN ABLE TO DO FOR DEFENSE.

2957
02:18:39,010 --> 02:18:40,812
MY JOB THERE IS I AM A PROGRAM

2958
02:18:40,879 --> 02:18:43,515
MANAGER AND I HAVE TO TELL YOU

2959
02:18:43,581 --> 02:18:51,022
IT'S THE BEST JOB IN THE WORLD.

2960
02:18:51,089 --> 02:18:53,625
THE MISSION AT ARPA-H IS TO

2961
02:18:53,692 --> 02:18:55,427
ACCELERATE BETTER HEALTH

2962
02:18:55,493 --> 02:18:56,995
OUTCOMES FOR EVERYONE.

2963
02:18:57,062 --> 02:18:59,164
SO EQUITY IS A BIG PART OF WHAT

2964
02:18:59,230 --> 02:19:03,535
WE THINK ABOUT ALL THE TIME AT

2965
02:19:03,601 --> 02:19:03,768
ARPA-H.

2966
02:19:03,835 --> 02:19:06,271
HOW CAN THE PROGRAMS THAT WE ARE

2967
02:19:06,337 --> 02:19:08,740
DEVELOPING BE ACCESSIBLE AND

2968
02:19:08,807 --> 02:19:11,810
VALUABLE TO EVERYONE?

2969
02:19:11,876 --> 02:19:12,677
SO THAT'S A FUNDAMENTAL AREA FOR

2970
02:19:12,744 --> 02:19:17,615
US.

2971
02:19:17,682 --> 02:19:21,119
IT'S IT STRUCTURED WE'RE A

2972
02:19:21,186 --> 02:19:22,353
FUNDING AGENCY AN INDEPENDENT

2973
02:19:22,420 --> 02:19:24,022
COMPONENT OF HHS.

2974
02:19:24,089 --> 02:19:26,324
WE'RE NOT PART OF NIH.

2975
02:19:26,391 --> 02:19:27,726
WE'RE NOT AN NIH INSTITUTE.

2976
02:19:27,792 --> 02:19:29,294
WE HAVE OUR OWN FUNDING.

2977
02:19:29,360 --> 02:19:34,299
WE HAVE OUR OWN LEADERSHIP WE

2978
02:19:34,365 --> 02:19:35,433
DON'T HAVE ANY LABS.

2979
02:19:35,500 --> 02:19:37,836
SO WE'RE NOT DOING THE WORK

2980
02:19:37,902 --> 02:19:38,236
THERE.

2981
02:19:38,303 --> 02:19:42,073
WE'RE PURELY A FUNDING AGENCY.

2982
02:19:42,140 --> 02:19:44,209
AND WE ARE DISEASE AGNOSTIC.

2983
02:19:44,275 --> 02:19:46,478
THAT'S WHAT PEOPLE HAVE A HARD

2984
02:19:46,544 --> 02:19:49,581
TIME UNDERSTANDING.

2985
02:19:49,647 --> 02:19:50,615
IT'S NOT LIKE CERTAIN PERCENTAGE

2986
02:19:50,682 --> 02:19:54,919
OF OUR FUNDS ARE GOING FOR EYES

2987
02:19:54,986 --> 02:19:57,021
AND CERTAIN PARTS FOR HEARTS AND

2988
02:19:57,088 --> 02:19:59,190
CERTAIN PARTS FOR CANCER.

2989
02:19:59,257 --> 02:19:59,357
NO.

2990
02:19:59,424 --> 02:20:03,828
THE WAY ARPA-H WORKS IS THE

2991
02:20:03,895 --> 02:20:04,996
PROGRAM MANAGERS DEVELOP THE

2992
02:20:05,063 --> 02:20:07,832
PROGRAMS, THE PROGRAMS COMPETE.

2993
02:20:07,899 --> 02:20:12,971
THE ONES THAT THE DIRECTOR

2994
02:20:13,037 --> 02:20:15,106
THINKS IS MOST LIKELY TO GET

2995
02:20:15,173 --> 02:20:16,941
FUNDED IN OUR MISSION AND OFF WE

2996
02:20:17,008 --> 02:20:17,208
GO.

2997
02:20:17,275 --> 02:20:24,716
WE BEGAN WITH A $2.5 BILLION

2998
02:20:24,783 --> 02:20:29,053
APPROPRIATION AND WE FUND

2999
02:20:29,120 --> 02:20:29,587
CONTRACTS NOT GRANTS.

3000
02:20:29,654 --> 02:20:35,894
WHAT WE'RE LOOKING TO DO IS TO

3001
02:20:35,960 --> 02:20:39,564
DEVELOP GREAT HEALTH PROGRAMS.

3002
02:20:39,631 --> 02:20:41,132
SO FOR MANY YEARS I WAS THE

3003
02:20:41,199 --> 02:20:43,401
CHIEF MEDICAL OFFICER OF A LARGE

3004
02:20:43,468 --> 02:20:45,136
PHARMACEUTICAL COMPANY AND

3005
02:20:45,203 --> 02:20:46,971
EVERYBODY USED TO USE THE WORD

3006
02:20:47,038 --> 02:20:50,642
R&D LIKE IT'S ONE WORD.

3007
02:20:50,708 --> 02:20:54,612
R&D ARE ACTUALLY DIFFERENT.

3008
02:20:54,679 --> 02:20:56,481
"R" IS RESEARCH.

3009
02:20:56,548 --> 02:20:57,615
RESEARCH EXPANDS THE AMOUNT OF

3010
02:20:57,682 --> 02:20:57,882
KNOWLEDGE.

3011
02:20:57,949 --> 02:21:00,485
STARTS WITH A PROBLEM AND GOES

3012
02:21:00,552 --> 02:21:02,720
IN DIFFERENT DIRECTION TO LEARN

3013
02:21:02,787 --> 02:21:04,222
MORE AND EXPAND WHAT WE DO.

3014
02:21:04,289 --> 02:21:09,561
DEVELOPMENT IS VERY DIFFERENT.

3015
02:21:09,627 --> 02:21:10,995
DEVELOPMENT SAYS WE HAVE A

3016
02:21:11,062 --> 02:21:12,096
CERTAIN AMOUNT OF KNOWLEDGE, HOW

3017
02:21:12,163 --> 02:21:18,636
ARE WE GOING TO GET AN OUTCOME?

3018
02:21:18,703 --> 02:21:22,373
WE SAY WE WANT TO BUILD A

3019
02:21:22,440 --> 02:21:25,343
VACCINE FOR COVID IN 180 DAYS.

3020
02:21:25,410 --> 02:21:26,644
HOW DO WE TAKE WHAT WE ALREADY

3021
02:21:26,711 --> 02:21:28,913
KNOW AND COME UP WITH A ROAD MAP

3022
02:21:28,980 --> 02:21:33,151
TO GET THAT INTO SNAG IS A

3023
02:21:33,218 --> 02:21:33,384
PRODUCT?

3024
02:21:33,451 --> 02:21:38,823
SO AT ARPA-H WE ARE MUCH MORE ON

3025
02:21:38,890 --> 02:21:43,828
THE D SIDE OF R&D OPPOSED TO

3026
02:21:43,895 --> 02:21:45,797
SOME OF THE INSTITUTES AT NIH

3027
02:21:45,864 --> 02:21:49,667
WHICH ARE MORE ON THE "R" SIDE.

3028
02:21:49,734 --> 02:21:51,269
IF SOMEONE ASKS ME THE

3029
02:21:51,336 --> 02:21:53,104
DIFFERENCE BETWEEN WHAT YOU'RE

3030
02:21:53,171 --> 02:21:55,173
DOING AND WHAT'S BEING DONE AT

3031
02:21:55,240 --> 02:21:55,473
NIH.

3032
02:21:55,540 --> 02:21:57,075
I TALK ABOUT THE DIFFERENCE

3033
02:21:57,141 --> 02:21:59,210
BETWEEN R&D AND WE DO SOME

3034
02:21:59,277 --> 02:22:00,645
RESEARCH MOSTLY ON THE

3035
02:22:00,712 --> 02:22:04,449
DEVELOPMENT SIDE.

3036
02:22:04,515 --> 02:22:07,151
NOW, THE LAST BULLET THE BOTTOM

3037
02:22:07,218 --> 02:22:12,557
CENTRIC APPROACH IS THE KEY TO

3038
02:22:12,624 --> 02:22:17,228
WHAT MAKES ARPA-H INTERESTING.

3039
02:22:17,295 --> 02:22:19,797
IT WORKS AROUND PROGRAM

3040
02:22:19,864 --> 02:22:20,098
MANAGERS.

3041
02:22:20,164 --> 02:22:25,303
WE'RE TERM LIMITED.

3042
02:22:25,370 --> 02:22:27,672
WE'RE HIRED FOR THREE YEARS AT

3043
02:22:27,739 --> 02:22:29,240
THE AGENCY'S REQUEST THEY CAN

3044
02:22:29,307 --> 02:22:32,043
RENEW US FOREANOTHER THREE BUT

3045
02:22:32,110 --> 02:22:33,478
FOR SURE BY SIX YEARS

3046
02:22:33,544 --> 02:22:35,213
EVERYBODY'S GONE FROM THE

3047
02:22:35,280 --> 02:22:36,714
DIRECTOR TO PROGRAM MANAGERS TO

3048
02:22:36,781 --> 02:22:37,181
MOST EVERYONE.

3049
02:22:37,248 --> 02:22:45,156
AND THE IDEA IS TO HAVE A

3050
02:22:45,223 --> 02:22:47,825
CONTINUAL FLOW OF NEW IDEAS AND

3051
02:22:47,892 --> 02:22:49,260
ENERGY COMING IN THE AGENCY.

3052
02:22:49,327 --> 02:22:54,098
THAT'S THE PLAN.

3053
02:22:54,165 --> 02:22:58,102
SO THIS BOTTOM'S UP APPROACH

3054
02:22:58,169 --> 02:23:00,371
WHAT IT DOES IS GIVE THE PROGRAM

3055
02:23:00,438 --> 02:23:02,807
MANAGER AN AMAZING AMOUNT OF

3056
02:23:02,874 --> 02:23:13,318
AUTONOMY TO MAKE DECISION.

3057
02:23:14,819 --> 02:23:15,687
PROBLEM FOCUSSED PROGRAM

3058
02:23:15,753 --> 02:23:16,154
MANAGERS.

3059
02:23:16,220 --> 02:23:18,289
THEY'RE PEOPLE WHO HAVE BOTH

3060
02:23:18,356 --> 02:23:23,027
EXPERIENCE IN MANAGEMENT,

3061
02:23:23,094 --> 02:23:24,362
EXPERIENCE IN EXPERIENCE IN

3062
02:23:24,429 --> 02:23:24,629
RESEARCH.

3063
02:23:24,696 --> 02:23:26,097
THEY'RE THE SO-CALLED

3064
02:23:26,164 --> 02:23:27,532
VISIONARIES WHO CAN SEE

3065
02:23:27,598 --> 02:23:35,740
ADVANCEMENTS IN HEALTH.

3066
02:23:35,807 --> 02:23:37,742
IT WOULD BE A RADICAL CHANGE.

3067
02:23:37,809 --> 02:23:46,417
WE'RE NOT LOOKING FOR ITERATIVE

3068
02:23:46,484 --> 02:23:46,684
CHANGES.

3069
02:23:46,751 --> 02:23:49,454
NOT THE GREAT NEXT MACHINE OR

3070
02:23:49,520 --> 02:23:50,288
DRONE BUT SOMETHING THAT'S A

3071
02:23:50,355 --> 02:23:57,095
DIFFERENT APPROACH TO HEALTH.

3072
02:23:57,161 --> 02:23:59,364
THAT'S WHAT WE'RE LOOKING FOR.

3073
02:23:59,430 --> 02:24:01,132
HIGH RISK, HIGH PAYOFF.

3074
02:24:01,199 --> 02:24:07,338
LARGE SKAUL.

3075
02:24:07,405 --> 02:24:09,774
THESE ARE PROJECT ARE OFTEN TOO

3076
02:24:09,841 --> 02:24:14,879
HARD OR TOO RISK FOR ACADEMIA OR

3077
02:24:14,946 --> 02:24:15,713
SOMETIMES NIH.

3078
02:24:15,780 --> 02:24:17,615
THESE ARE PROJECTS THAT WOULD

3079
02:24:17,682 --> 02:24:23,121
NOT OTHERWISE GET FUNDED.

3080
02:24:23,187 --> 02:24:24,989
SO THE IDEA HERE IS THAT WITH

3081
02:24:25,056 --> 02:24:29,694
WANT TO KEEP THE U.S. AS THE

3082
02:24:29,761 --> 02:24:31,362
PREMIER FOREFRONT FOR MEDICAL

3083
02:24:31,429 --> 02:24:32,497
RESEARCH AND DEVELOPMENT AND THE

3084
02:24:32,563 --> 02:24:39,037
WAY WE'RE GOING TO DO THAT IS

3085
02:24:39,103 --> 02:24:41,039
BEING ABLE TO ADDRESS THESE HIGH

3086
02:24:41,105 --> 02:24:43,908
RISK, HIGH REWARD PROGRAMS THAT

3087
02:24:43,975 --> 02:24:45,376
OTHERS WOULDN'T LIKELY BE ABLE

3088
02:24:45,443 --> 02:24:45,877
TO FUND.

3089
02:24:45,943 --> 02:24:46,577
SO PROGRAM MANAGERS THAT DO

3090
02:24:46,644 --> 02:24:51,849
EVERYTHING.

3091
02:24:51,916 --> 02:24:52,850
THEY DO EVERYTHING FOR THE

3092
02:24:52,917 --> 02:24:54,118
VISION FOR THE PROGRAM AND ONCE

3093
02:24:54,185 --> 02:24:56,287
THEY GET APPROVED AND MANAGING

3094
02:24:56,354 --> 02:25:01,559
THE PROGRAMS AND SETTING THE

3095
02:25:01,626 --> 02:25:12,103
METRICS AND MILESTONES TERM

3096
02:25:14,038 --> 02:25:15,440
LIMITS AND THE PROGRAM MANAGER

3097
02:25:15,506 --> 02:25:15,973
IDENTIFIES THIS DIFFICULT

3098
02:25:16,040 --> 02:25:21,279
CHALLENGE.

3099
02:25:21,345 --> 02:25:22,747
ONE OF MY FAVORITE QUOTES IS

3100
02:25:22,814 --> 02:25:23,781
FALL IN LOVE WITH THE PROBLEM

3101
02:25:23,848 --> 02:25:29,821
NOT WITH THE SOLUTION.

3102
02:25:29,887 --> 02:25:31,522
TO COME UP WITH A PROBLEM THAT

3103
02:25:31,589 --> 02:25:32,390
NEEDS TO BE ADDRESSED.

3104
02:25:32,457 --> 02:25:33,458
UNDERSTANDING THERE MAY BE MORE

3105
02:25:33,524 --> 02:25:37,195
THAN ONE SOLUTION TO THIS.

3106
02:25:37,261 --> 02:25:41,599
THEN GO OUT AND LAUNCH A PROGRAM

3107
02:25:41,666 --> 02:25:42,633
WHERE YOU WELCOME DIFFERENT

3108
02:25:42,700 --> 02:25:47,705
PERFORMERS WHO HAVE DIFFERENT

3109
02:25:47,772 --> 02:25:51,442
IDEAS OF HOW TO SOLVE THIS

3110
02:25:51,509 --> 02:25:52,944
PROBLEM AND MULTIPLE PERFORMERS

3111
02:25:53,010 --> 02:25:54,712
EACH WITH THEIR OWN IDEA OF HOW

3112
02:25:54,779 --> 02:26:01,119
THEY ARE GOING COME UP WITH A

3113
02:26:01,185 --> 02:26:02,653
SOLUTION TO THIS CHALLENGE.

3114
02:26:02,720 --> 02:26:08,126
NOW YOU HAVE MULTIPLE PERFORMERS

3115
02:26:08,192 --> 02:26:10,361
WITH THEIR OWN METRICS AND TIME

3116
02:26:10,428 --> 02:26:11,028
LINES AND YOU EVALUATE THEM OVER

3117
02:26:11,095 --> 02:26:20,872
TIME.

3118
02:26:20,938 --> 02:26:23,107
AND IF THEY'RE NOT ABLE TO DO IT

3119
02:26:23,174 --> 02:26:24,308
ON THE TIME LINE THEN DOWN

3120
02:26:24,375 --> 02:26:26,844
SELECTION OCCURS.

3121
02:26:26,911 --> 02:26:33,117
MAY START OUT WITH FOUR, FIVE,

3122
02:26:33,184 --> 02:26:37,955
SIX PERFORMERS AND GETS PEARED

3123
02:26:38,022 --> 02:26:44,762
DOWN TO ONE OR TWO TO GET TO THE

3124
02:26:44,829 --> 02:26:47,131
WAY OF MAKING A CHANGE IN HEALTH

3125
02:26:47,198 --> 02:26:47,331
CARE.

3126
02:26:47,398 --> 02:26:52,470
SO ARPA-H IS DIVIDE UP INTO FOUR

3127
02:26:52,537 --> 02:26:55,673
OFFICES DOING DIFFERENT THINGS.

3128
02:26:55,740 --> 02:26:57,175
I'M IN THE OFFICE CALLED HEALTH

3129
02:26:57,241 --> 02:26:58,409
SCIENCE FUTURES.

3130
02:26:58,476 --> 02:27:00,244
WHAT WE'RE TRYING TO DO IS

3131
02:27:00,311 --> 02:27:02,413
COMING UP WITH THOSE MOON SHOT

3132
02:27:02,480 --> 02:27:03,247
MEDICAL ADVANCES.

3133
02:27:03,314 --> 02:27:05,216
THOSE THINGS THAT ARE SO BIG AND

3134
02:27:05,283 --> 02:27:08,519
SO HARD AND SO COMPLICATED THAT

3135
02:27:08,586 --> 02:27:09,287
NO ONE HAS EVER BEEN ABLE TO DO

3136
02:27:09,353 --> 02:27:16,394
THEM.

3137
02:27:16,460 --> 02:27:26,971
SCALABLE SOLUTIONS, AND MAKE

3138
02:27:31,108 --> 02:27:35,279
SURE WE'RE GETTING IN URBAN

3139
02:27:35,346 --> 02:27:38,082
AREAS IS THE SAME AS RURAL.

3140
02:27:38,149 --> 02:27:39,383
WHERE PEOPLE LIVE WITHIN THE

3141
02:27:39,450 --> 02:27:44,989
COUNTRY AND AROUND THE WORLD TO

3142
02:27:45,056 --> 02:27:55,333
GET THE SAME QUALITY AND GET

3143
02:27:55,399 --> 02:27:56,367
THINGS OUT SO EVERYONE IS ABLE

3144
02:27:56,434 --> 02:27:58,970
TO ACCESS THE HIGHEST QUALITY OF

3145
02:27:59,036 --> 02:27:59,270
CARE.

3146
02:27:59,337 --> 02:28:00,805
AT PROACTIVE HEALTH WE'RE TRYING

3147
02:28:00,871 --> 02:28:03,241
TO KEEP PEOPLE HEALTHY.

3148
02:28:03,307 --> 02:28:05,309
THAT IS WHAT KIND OF PROGRAMS

3149
02:28:05,376 --> 02:28:12,049
COULD BE DONE AND PREVENTIVE

3150
02:28:12,116 --> 02:28:12,316
MEDICINE.

3151
02:28:12,383 --> 02:28:14,252
AND HOW TO ANTICIPATE THE BIG

3152
02:28:14,318 --> 02:28:15,653
CHALLENGES IN HEALTH WHETHER

3153
02:28:15,720 --> 02:28:18,756
THEY'RE FROM A PANDEMIC OR SOME

3154
02:28:18,823 --> 02:28:19,190
CHEMICAL, PHYSICAL.

3155
02:28:19,257 --> 02:28:22,994
WHATEVER COULD BE.

3156
02:28:23,060 --> 02:28:26,163
THAT POTENTIALLY COULD BE

3157
02:28:26,230 --> 02:28:27,431
CAUSING HEALTH PROBLEMS IN THE

3158
02:28:27,498 --> 02:28:28,966
FUTURE, HOW ARE WE GOING TO KEEP

3159
02:28:29,033 --> 02:28:30,268
PEOPLE HEALTHY?

3160
02:28:30,334 --> 02:28:32,970
AND FINALLY.

3161
02:28:33,037 --> 02:28:38,142
WE HAVE A RESILIENT SYSTEMS

3162
02:28:38,209 --> 02:28:48,319
GROUP.

3163
02:28:52,590 --> 02:28:54,292
AND ECONOMIC INSTABILITY THAT IS

3164
02:28:54,358 --> 02:28:55,726
SOMETHING THAT IS BIG AND BOLD

3165
02:28:55,793 --> 02:28:57,428
AND HAPPENING TO OUR ECONOMY AND

3166
02:28:57,495 --> 02:29:01,332
TO OUR WAY OF LIFE IS NOT GOING

3167
02:29:01,399 --> 02:29:06,370
TO INTERFERE WITH OUR HEALTH

3168
02:29:06,437 --> 02:29:07,271
CARE SYSTEMS.

3169
02:29:07,338 --> 02:29:09,106
AND THE TYPES OF PROGRAMS

3170
02:29:09,173 --> 02:29:10,541
THEY'RE DOING THERE ARE AMAZING

3171
02:29:10,608 --> 02:29:13,110
TO TRY TO MAKE SURE THAT WE'RE

3172
02:29:13,177 --> 02:29:14,812
ABLE TO KEEP OUR HEALTH CARE

3173
02:29:14,879 --> 02:29:16,681
SYSTEM GOING DESPITE

3174
02:29:16,747 --> 02:29:20,918
INTERRUPTIONS THAT MAY OCCUR.

3175
02:29:20,985 --> 02:29:23,754
ALL RIGHT, SO IF YOU CAN SEE

3176
02:29:23,821 --> 02:29:25,756
THIS TIME LINE, IT'S JUST KIND

3177
02:29:25,823 --> 02:29:26,924
OF AN EXAMPLE OF HOW FAST THINGS

3178
02:29:26,991 --> 02:29:30,294
ARE GOING.

3179
02:29:30,361 --> 02:29:34,832
SO CAN SEE WHILE ARPA-H HAS BEEN

3180
02:29:34,899 --> 02:29:36,000
AROUND WELL ALMOST TWO YEARS

3181
02:29:36,067 --> 02:29:44,375
SINCE IT WAS CREATED REALLY OPEN

3182
02:29:44,442 --> 02:29:45,209
FOR BUSINESS OVER A YEAR AGO AND

3183
02:29:45,276 --> 02:29:46,544
THE TIME LINE IS REALLY IN THE

3184
02:29:46,610 --> 02:29:47,912
LAST ONE YEAR.

3185
02:29:47,978 --> 02:29:49,313
WHAT YOU SEE ON TOP ARE NAMES OF

3186
02:29:49,380 --> 02:29:50,948
PROGRAMS AND I'LL GO OVER SOME

3187
02:29:51,015 --> 02:29:54,452
OF THOSE PROGRAMS SOON.

3188
02:29:54,518 --> 02:29:58,422
AND ON THE BOTTOM ARE WHAT WE

3189
02:29:58,489 --> 02:29:59,023
CALL PROJECTS.

3190
02:29:59,090 --> 02:30:00,424
SO WHAT THE DIFFERENCE BETWEEN A

3191
02:30:00,491 --> 02:30:05,429
PROGRAM AND PROJECT.

3192
02:30:05,496 --> 02:30:07,131
A PROGRAM IS ONE CREATED,

3193
02:30:07,198 --> 02:30:09,533
INITIATED AND DEVELOPED BY A

3194
02:30:09,600 --> 02:30:10,134
PROGRAM MANAGER.

3195
02:30:10,201 --> 02:30:14,138
SO THESE ARE THE PROGRAMS THAT

3196
02:30:14,205 --> 02:30:15,773
I'VE DEVELOPED AND OTHERS HAVE

3197
02:30:15,840 --> 02:30:16,474
DEVELOPED.

3198
02:30:16,540 --> 02:30:18,776
THE BOTTOM ONES ARE PROJECTS.

3199
02:30:18,843 --> 02:30:20,211
PROJECTS ARE ONES THAT CAME FROM

3200
02:30:20,277 --> 02:30:21,212
THE OUTSIDE.

3201
02:30:21,278 --> 02:30:24,382
SO WE HAVE AN OPEN CALL

3202
02:30:24,448 --> 02:30:28,486
CONTINUOUSLY THAT IF SOMEONE HAS

3203
02:30:28,552 --> 02:30:31,856
AN IDEA FOR A BILL BOLD PROGRAM

3204
02:30:31,922 --> 02:30:33,624
OR IN THIS CASE PROJECT TO BE

3205
02:30:33,691 --> 02:30:35,593
DONE THEY CAN DESCEND THAT IN

3206
02:30:35,659 --> 02:30:38,496
AND IF WE CHOOSE THAT, THEN THEY

3207
02:30:38,562 --> 02:30:40,698
WILL GET FUNDED IN ADDITION TO

3208
02:30:40,765 --> 02:30:42,133
THE BIG PROGRAMS THAT WE'RE

3209
02:30:42,199 --> 02:30:43,234
WORKING ON.

3210
02:30:43,300 --> 02:30:44,235
SO THE NAME ON THE BOTTOM ARE

3211
02:30:44,301 --> 02:30:54,478
PROJECTS.

3212
02:31:02,853 --> 02:31:08,826
THE FIRST GOES BY THE AC KNOW

3213
02:31:08,893 --> 02:31:10,594
NYM

3214
02:31:10,661 --> 02:31:12,830
NYMPH NITRO.

3215
02:31:12,897 --> 02:31:14,999
IN MY AGE GROUP I HAVE SO MANY

3216
02:31:15,065 --> 02:31:19,637
PEOPLE HAVING KNEE REPLACEMENTS

3217
02:31:19,703 --> 02:31:25,910
AND WEARING OUT AND

3218
02:31:25,976 --> 02:31:26,477
OSTEOARTHRITIS.

3219
02:31:26,544 --> 02:31:28,612
WE THINK WHAT IF NO ONE NEEDED A

3220
02:31:28,679 --> 02:31:30,347
NEW HIP OR KNEE BECAUSE THEY

3221
02:31:30,414 --> 02:31:32,616
DIDN'T WEAR OUT BECAUSE

3222
02:31:32,683 --> 02:31:33,451
OSTEOARTHRITIS GOES AWAY?

3223
02:31:33,517 --> 02:31:38,022
THERE'S A WAY TO REVERSE

3224
02:31:38,088 --> 02:31:41,125
OSTEOARTHRITIS OR MAKE SURE THE

3225
02:31:41,192 --> 02:31:43,127
OSTEOARTHRITIS NEVER OCCURS.

3226
02:31:43,194 --> 02:31:46,397
SO PEOPLE'S JOINTS STAY GOOD FOR

3227
02:31:46,464 --> 02:31:49,133
LIFE?

3228
02:31:49,200 --> 02:31:49,300
WOW.

3229
02:31:49,366 --> 02:31:50,367
WOULDN'T THAT BE COOL?

3230
02:31:50,434 --> 02:31:52,470
DOESN'T THAT SOUND LIKE A GOOD

3231
02:31:52,536 --> 02:31:55,639
MOON SHOT IDEA TO GET RID ARE OF

3232
02:31:55,706 --> 02:31:56,040
OSTEOARTHRITIS.

3233
02:31:56,106 --> 02:31:56,740
THAT'S A GREAT PROGRAM.

3234
02:31:56,807 --> 02:32:02,313
HERE'S ANOTHER ONE.

3235
02:32:02,379 --> 02:32:04,181
THIS IS CALLED PRECISION

3236
02:32:04,248 --> 02:32:04,849
SURGICAL INTERVENTION.

3237
02:32:04,915 --> 02:32:10,888
THIS ADDRESSES THE IDEA THAT SO

3238
02:32:10,955 --> 02:32:12,189
OFTEN IN CANCER SURGERY EITHER

3239
02:32:12,256 --> 02:32:19,964
NOT ALL THE TUMOR WAS REMOVED OR

3240
02:32:20,030 --> 02:32:23,067
THE TUMOR WAS REMOVED WITH

3241
02:32:23,133 --> 02:32:23,767
NORMAL TISSUE.

3242
02:32:23,834 --> 02:32:26,537
HOW CAN WE DO CANCER SURGERY IN

3243
02:32:26,604 --> 02:32:29,473
A WAY TO VISUALIZE WHERE THE

3244
02:32:29,540 --> 02:32:30,774
MARGINS ARE.

3245
02:32:30,841 --> 02:32:32,209
WHERE WHAT TISSUE IS CANCEROUS

3246
02:32:32,276 --> 02:32:34,311
AND WHAT TISSUE IS NORMAL.

3247
02:32:34,378 --> 02:32:36,046
ONLY REMOVE THE CANCEROUS

3248
02:32:36,113 --> 02:32:36,280
TISSUE.

3249
02:32:36,347 --> 02:32:40,150
DON'T REMOVE THE NORMAL TISSUE.

3250
02:32:40,217 --> 02:32:43,187
BY THE WAY, ONE OF THE BIGGEST

3251
02:32:43,254 --> 02:32:45,823
COMPLICATIONS OF CANCER SURGERY

3252
02:32:45,890 --> 02:32:52,396
IS CUTTING A MAJOR ARTERY OR B,

3253
02:32:52,463 --> 02:32:54,932
CUTTING OR CUTTING A MAJOR NERVE

3254
02:32:54,999 --> 02:32:57,935
OR PROSTATE OR BREAST SURGERY,

3255
02:32:58,002 --> 02:32:59,770
WHAT YOU SEE THERE IS ONE OF THE

3256
02:32:59,837 --> 02:33:01,338
BIGGEST COMPLICATIONS IS CUTTING

3257
02:33:01,405 --> 02:33:03,173
OF SENSORY NERVES.

3258
02:33:03,240 --> 02:33:06,076
WHAT IF YOU COULD SEE THOSE

3259
02:33:06,143 --> 02:33:07,444
NERVES DURING SURGERY?

3260
02:33:07,511 --> 02:33:10,047
SO YOU COULD WORK AROUND THEM

3261
02:33:10,114 --> 02:33:11,448
AND NEVER CUT THEM?

3262
02:33:11,515 --> 02:33:12,850
AS WELL AS BEING ABLE TO SEE THE

3263
02:33:12,917 --> 02:33:16,487
MAJOR VESSELS?

3264
02:33:16,554 --> 02:33:21,659
SO YOU WORK AROUND THEM.

3265
02:33:21,725 --> 02:33:30,501
HERE'S ANOTHER ONE.

3266
02:33:30,568 --> 02:33:32,903
APEC X.

3267
02:33:32,970 --> 02:33:34,471
THERE'S VIRUS INFECT HUMANS AND

3268
02:33:34,538 --> 02:33:37,741
WE HAVE VIRUSES FOR 17 OUT OF

3269
02:33:37,808 --> 02:33:38,175
275.

3270
02:33:38,242 --> 02:33:41,912
BECAUSE THE WAY WE MAKE VACCINES

3271
02:33:41,979 --> 02:33:46,450
IS YOU MAKE A VACCINE FOR A

3272
02:33:46,517 --> 02:33:47,351
PARTICULAR VIRUS AT A PARTICULAR

3273
02:33:47,418 --> 02:33:48,419
POINT IN TIME.

3274
02:33:48,485 --> 02:33:52,222
WHAT IF WE COULD MAKE VACCINES

3275
02:33:52,289 --> 02:33:55,225
THAT WOULD COVER A WHOLE FAMILY,

3276
02:33:55,292 --> 02:33:58,529
A WHOLE GENUS OF VIRUSES THAT

3277
02:33:58,596 --> 02:34:02,099
ONE VACCINE WOULD COVER 15, 20,

3278
02:34:02,166 --> 02:34:04,468
30 VIRUSES WITH ONE VACCINE?

3279
02:34:04,535 --> 02:34:11,308
AND YOU WOULDN'T NEED TO GET

3280
02:34:11,375 --> 02:34:12,876
BOOSTERS, WENT THAT BE AMAZING.

3281
02:34:12,943 --> 02:34:15,012
YOU WOULD GET TWO OR THREE

3282
02:34:15,079 --> 02:34:16,480
VACCINES AND WOULD COVER MOST

3283
02:34:16,547 --> 02:34:17,848
THE VIRUSES YOU COULD LIKELY

3284
02:34:17,915 --> 02:34:20,250
CATCH IN YOUR LIFE TIME.

3285
02:34:20,317 --> 02:34:23,554
THAT'S WHAT THEY'RE DOING AT

3286
02:34:23,621 --> 02:34:24,788
APECX.

3287
02:34:24,855 --> 02:34:28,459
HERE'S ANOTHER ONE, PRINT.

3288
02:34:28,525 --> 02:34:34,064
HOW ABOUT IF WE COULD 3-D PRINT

3289
02:34:34,131 --> 02:34:34,298
ORGANS?

3290
02:34:34,365 --> 02:34:38,469
IF YOU NEED A NEW HEART YOU COWL

3291
02:34:38,535 --> 02:34:40,738
DRAW SOMEBODY'S BLOOD, GROW THE

3292
02:34:40,804 --> 02:34:43,173
PARTICULAR TYPES OF CELLS YOU

3293
02:34:43,240 --> 02:34:47,478
NEED AND 3-D PRINT A HEART OR A

3294
02:34:47,544 --> 02:34:48,712
KIDNEY OR A LIVER.

3295
02:34:48,779 --> 02:34:51,548
IN A WAY THAT YOU DIDN'T NEED

3296
02:34:51,615 --> 02:34:51,782
DONORS.

3297
02:34:51,849 --> 02:34:53,984
YOU DON'T HAVE TO WORRY ABOUT

3298
02:34:54,051 --> 02:34:56,654
SOMEBODY BEING ON A WAITING LIST

3299
02:34:56,720 --> 02:34:58,522
OR WORRY ABOUT IMMUNOSUPPRESSANT

3300
02:34:58,589 --> 02:35:00,124
AND ORGANS REREJECTING BECAUSE

3301
02:35:00,190 --> 02:35:05,896
YOU MAKE THEM OUT OF A PERSON'S

3302
02:35:05,963 --> 02:35:07,765
OWN DNA.

3303
02:35:07,831 --> 02:35:10,034
WOULDN'T THAT BE COOL.

3304
02:35:10,100 --> 02:35:11,935
WHAT IF WE COULD BIO PRINT ANY

3305
02:35:12,002 --> 02:35:12,736
ORGAN ON DEMAND?

3306
02:35:12,803 --> 02:35:13,337
THAT'S WHAT THEY'RE DOING AT

3307
02:35:13,404 --> 02:35:22,713
PRINT.

3308
02:35:22,780 --> 02:35:25,449
HERE'S ONE MORE LOOKING AT THE

3309
02:35:25,516 --> 02:35:26,984
LYMPHATIC SYSTEM.

3310
02:35:27,051 --> 02:35:31,422
IT'S BEEN UNDER APPRECIATED AND

3311
02:35:31,488 --> 02:35:35,225
UNDER STUDIED AND THE EFFECT IT

3312
02:35:35,292 --> 02:35:36,894
HAS ON HEALTH HAS BEEN GREAT.

3313
02:35:36,960 --> 02:35:38,529
WHAT IF YOU COULD SEE THE

3314
02:35:38,595 --> 02:35:41,632
LYMPHATIC SYSTEM AND SEE WHAT'S

3315
02:35:41,699 --> 02:35:43,300
GOING ON AND VISUALIZE WHAT'S

3316
02:35:43,367 --> 02:35:46,437
GOING ON AND THEN YOU CAN TREAT

3317
02:35:46,503 --> 02:35:57,047
IT AND MAKE THINGS BETTER AND SO

3318
02:35:58,282 --> 02:36:00,117
THIS PROGRAM WAS LAUNCHED AND

3319
02:36:00,184 --> 02:36:01,552
BRIDGING ATTENTION TO THE

3320
02:36:01,618 --> 02:36:02,086
LYMPHATIC SYSTEM AND THE

3321
02:36:02,152 --> 02:36:12,496
POTENTIAL IS GREAT.

3322
02:36:16,734 --> 02:36:20,003
MY PROGRAM IS THEA AND THE IDEA

3323
02:36:20,070 --> 02:36:23,674
IS TO TRANSPLANT A WHOLE EYE

3324
02:36:23,741 --> 02:36:26,276
FROM A DONOR TO RESTORE VISION

3325
02:36:26,343 --> 02:36:28,412
TO SOMEONE WHO IS BLIND.

3326
02:36:28,479 --> 02:36:29,680
THIS HAS NEVER BEEN DONE.

3327
02:36:29,747 --> 02:36:36,653
IT'S BEEN TALKED ABOUT FOR

3328
02:36:36,720 --> 02:36:37,654
HUNDREDS OF.

3329
02:36:37,721 --> 02:36:38,322
THIS IS THE TIME WHERE IT CAN BE

3330
02:36:38,388 --> 02:36:44,895
DONE.

3331
02:36:44,962 --> 02:36:47,030
AND THE EYE IS NOTHING MORE THAN

3332
02:36:47,097 --> 02:36:49,032
THE INTERIOR EXTENSION OF THE

3333
02:36:49,099 --> 02:36:49,466
BRAIN.

3334
02:36:49,533 --> 02:36:53,604
THE EYE IS MADE OUT OF BRAIN

3335
02:36:53,670 --> 02:36:54,471
TISSUE AND ANYTHING THAT WORKS

3336
02:36:54,538 --> 02:36:56,006
FOR THE EYE IS LIKELY TO WORK

3337
02:36:56,073 --> 02:37:00,244
FOR THE BRAIN AS WELL.

3338
02:37:00,310 --> 02:37:04,414
SO AS WE LEARN HOW TO

3339
02:37:04,481 --> 02:37:06,517
POTENTIALLY TRANSPLANT EYES THEN

3340
02:37:06,583 --> 02:37:09,920
WHAT WE LARN HERE IS APPLICABLE

3341
02:37:09,987 --> 02:37:13,123
TO ALL FORMS OF NEURAL TISSUE.

3342
02:37:13,190 --> 02:37:15,926
SO, WE TRANSPLANT HEARTS, WE

3343
02:37:15,993 --> 02:37:24,601
TRANSPLANT LUNGS, WE TRANSPLANT

3344
02:37:24,668 --> 02:37:26,136
LIVERS AND KIDNEYS AND WHY DON'T

3345
02:37:26,203 --> 02:37:29,973
WE TRANSPLANT EYES?

3346
02:37:30,040 --> 02:37:31,175
THE ANSWER IS IT'S PART OF THE

3347
02:37:31,241 --> 02:37:32,709
BRAIN AND TRANSPLANTING THE EYE

3348
02:37:32,776 --> 02:37:36,113
WOULD BE LIKE TRANSPLANTING A

3349
02:37:36,180 --> 02:37:36,313
BRAIN.

3350
02:37:36,380 --> 02:37:37,114
IT WOULDN'T BE JUST

3351
02:37:37,181 --> 02:37:38,382
TRANSPLANTING THE EYE AND THE

3352
02:37:38,448 --> 02:37:41,518
OPTIC NEVER BUT THE OTHER

3353
02:37:41,585 --> 02:37:42,619
CRANIAL NERVES.

3354
02:37:42,686 --> 02:37:50,093
CRANIAL NERVES, 3, 4, 5, AND 6

3355
02:37:50,160 --> 02:37:54,031
AND ATTACH THEM WITH THE BLOOD

3356
02:37:54,097 --> 02:37:58,035
VESSELS AND MUSCLES.

3357
02:37:58,101 --> 02:37:59,570
IT'S NEVER BEEN DONE.

3358
02:37:59,636 --> 02:38:03,207
IF WE COULD TRANSPLANT EYES YOU

3359
02:38:03,273 --> 02:38:13,784
MAY BE ABLE TO RESTORE VISION.

3360
02:38:16,320 --> 02:38:17,120
AND THOSE IN THE FRONT AND BACK

3361
02:38:17,187 --> 02:38:27,397
OF THE EYE.

3362
02:38:31,001 --> 02:38:41,478
THERE'S RETOPATHY -- RETINOPATHY

3363
02:38:43,547 --> 02:38:44,514
BECAUSE DIABETES IS A PROBLEM IN

3364
02:38:44,581 --> 02:38:46,083
THIS COUNTRY AND THERE'S NOTHING

3365
02:38:46,149 --> 02:38:47,818
THAT CAN RESTORE VISION TO

3366
02:38:47,885 --> 02:38:50,754
PEOPLE WITH THESE CONDITIONS.

3367
02:38:50,821 --> 02:38:52,890
ON THE OTHER HAND CONDITIONS OF

3368
02:38:52,956 --> 02:38:57,227
THE FRONT OF THE EYE CATARACT,

3369
02:38:57,294 --> 02:38:59,196
CORNEAL DISEASE WE HAVE LEARNED

3370
02:38:59,263 --> 02:39:01,965
THAT THOSE ARE CONDITIONS THAT

3371
02:39:02,032 --> 02:39:04,301
WE CAN OPERATE ON AND ACTUALLY

3372
02:39:04,368 --> 02:39:04,835
RESTORE VISION.

3373
02:39:04,902 --> 02:39:08,438
SO WHAT WE WANT TO DO IS TAKE

3374
02:39:08,505 --> 02:39:10,974
WHAT WE'VE LEARNED ABOUT HOW WE

3375
02:39:11,041 --> 02:39:16,480
CAN TRANSPLANT THE FRONT OF THE

3376
02:39:16,546 --> 02:39:25,122
EYE TRANSPLANT WHOLE EYES.

3377
02:39:25,188 --> 02:39:31,595
THERE'S ABOUT 70  -- AND 70,000

3378
02:39:31,662 --> 02:39:33,597
PEOPLE EACH YEAR WOULD DONATE

3379
02:39:33,664 --> 02:39:36,433
EYES AND SO WHAT HAPPENS?

3380
02:39:36,500 --> 02:39:37,567
SO WHEN SOMEONE DIES AND THEY

3381
02:39:37,634 --> 02:39:45,542
WANT TO DONATE THEIR EYES, A

3382
02:39:45,609 --> 02:39:47,611
TECHNICIAN GOES AND RETRIEVES

3383
02:39:47,678 --> 02:39:49,913
THE EYES FROM THE CADAVER.

3384
02:39:49,980 --> 02:39:52,482
IT'S BROUGHT TO THE EYE BANK

3385
02:39:52,549 --> 02:39:55,218
WHERE IT'S PROCESSED AND IT CAN

3386
02:39:55,285 --> 02:39:57,888
BE STORED FOR AT LEAST A WEEK.

3387
02:39:57,955 --> 02:39:58,622
IT'S THEN BROUGHT TO THE SITE

3388
02:39:58,689 --> 02:39:59,523
WHERE THE SURGERY IS GOING TO

3389
02:39:59,589 --> 02:40:04,161
OCCUR.

3390
02:40:04,227 --> 02:40:07,998
CORNEA TRANSPLANT DONE BY

3391
02:40:08,065 --> 02:40:10,500
OPHTHALMOLOGISTS.

3392
02:40:10,567 --> 02:40:16,273
THE CORNEA IS IN A PLACE WHERE

3393
02:40:16,340 --> 02:40:17,975
REJECTION IS NOT USUAL AND

3394
02:40:18,041 --> 02:40:19,643
VISION RESTORED IN WEEKS TO

3395
02:40:19,710 --> 02:40:20,210
MONTHS.

3396
02:40:20,277 --> 02:40:25,115
NOW, WHEN WE START THINKING

3397
02:40:25,182 --> 02:40:27,918
ABOUT HOW WOULD WE TRANSPLANT A

3398
02:40:27,985 --> 02:40:31,388
WHOLE EYE, THAT HAS ITS UNIQUE

3399
02:40:31,455 --> 02:40:31,621
HURDLES.

3400
02:40:31,688 --> 02:40:32,422
LET'S GO THROUGH THEM.

3401
02:40:32,489 --> 02:40:35,325
SO WHEN WE TALK ABOUT

3402
02:40:35,392 --> 02:40:39,429
TRANSPLANTING WHOLE EYE WE HAVE

3403
02:40:39,496 --> 02:40:48,205
TO DO IT FROM ORGAN DONORS.

3404
02:40:48,271 --> 02:40:54,678
PEOPLE WHO ARE BRAIN DEAD OR

3405
02:40:54,745 --> 02:40:56,346
HAVE A FUNCTIONING HEART SO THE

3406
02:40:56,413 --> 02:40:58,882
EYES CONTINUE TO BE PROFUSED.

3407
02:40:58,949 --> 02:41:00,217
THESE ARE THE SAME PEOPLE

3408
02:41:00,283 --> 02:41:05,889
DONATING THEIR HEARTS, LIVERS,

3409
02:41:05,956 --> 02:41:07,190
KIDNEYS, EYE DONATION WOULD BE

3410
02:41:07,257 --> 02:41:12,262
PART OF THE PROCESS.

3411
02:41:12,329 --> 02:41:21,638
IN THIS CASE THE BIG DEAL IS HOW

3412
02:41:21,705 --> 02:41:24,107
TO REATTACH THE OPTIC NERVE AND

3413
02:41:24,174 --> 02:41:26,643
THE NEW DONOR EYE CAN TRANSMIT

3414
02:41:26,710 --> 02:41:28,745
INFORMATION TO THE BRAIN AND THE

3415
02:41:28,812 --> 02:41:32,883
BRAIN CAN THEN INTERPRET AS

3416
02:41:32,949 --> 02:41:33,183
VISION.

3417
02:41:33,250 --> 02:41:34,918
AND THEN THE THIRD BIG HURDLE

3418
02:41:34,985 --> 02:41:36,887
FOR US IS HOW ARE WE GOING TO DO

3419
02:41:36,953 --> 02:41:38,422
THE SURGERY.

3420
02:41:38,488 --> 02:41:41,324
IT TAKES A WHOLE TEAM OF

3421
02:41:41,391 --> 02:41:43,126
NEUROSURGEONS AND PLASTIC

3422
02:41:43,193 --> 02:41:43,427
SURGEONS.

3423
02:41:43,493 --> 02:41:46,496
IT'S A BIG SURGICAL TEAM.

3424
02:41:46,563 --> 02:41:50,233
NOW WE VERY TO DEAL A LOT WITH

3425
02:41:50,300 --> 02:41:51,234
IMMUNOLOGY BECAUSE THESE EYES

3426
02:41:51,301 --> 02:41:54,504
CAN REJECT AND OF COURSE THEY'RE

3427
02:41:54,571 --> 02:41:57,541
NOT GOING TO HAVE THE VISION

3428
02:41:57,607 --> 02:42:00,744
RESTORED INSTANTANEOUSLY BECAUSE

3429
02:42:00,811 --> 02:42:05,449
IT WILL TALK AWHILE FOR THE OPT

3430
02:42:05,515 --> 02:42:08,018
IC NERVE TO GROW AND HOW WILL WE

3431
02:42:08,085 --> 02:42:13,423
ASSESS HOW WE'LL HARVEST AND DO

3432
02:42:13,490 --> 02:42:14,291
THE SURGERY.

3433
02:42:14,357 --> 02:42:17,527
THE HURDLES BECOME THE TECHNICAL

3434
02:42:17,594 --> 02:42:21,131
AREAS WE'LL STUDY SO TISSUE

3435
02:42:21,198 --> 02:42:22,265
HARVEST AND PRESERVATION, HOW

3436
02:42:22,332 --> 02:42:24,668
WILL WE HARVEST THE EYES FROM

3437
02:42:24,734 --> 02:42:26,403
THE DONORS AND HOW TO MAINTAIN

3438
02:42:26,470 --> 02:42:28,238
THE EYE VIABLE FROM THE TIME

3439
02:42:28,305 --> 02:42:37,314
IT'S HARVESTED UNTIL THE TIME TO

3440
02:42:37,380 --> 02:42:43,420
PUT INTO THE DONOR AND HOW WILL

3441
02:42:43,487 --> 02:42:43,987
RE

3442
02:42:44,054 --> 02:42:45,288
WE REATTACH THE OPTIC NERVE AND

3443
02:42:45,355 --> 02:42:47,390
CARE FOR THEM IN THE FUTURE.

3444
02:42:47,457 --> 02:42:51,428
HERE'S A VIDEO OF IDEAS OF HOW

3445
02:42:51,495 --> 02:42:54,831
WE'RE LOOKING TO REATTACH AN

3446
02:42:54,898 --> 02:42:55,365
OPTIC NERVE.

3447
02:42:55,432 --> 02:42:58,502
SO WHAT YOU SEE IS THE OPTIC

3448
02:42:58,568 --> 02:42:59,236
NERVE CARRIES THE MESSAGE TO THE

3449
02:42:59,302 --> 02:43:07,177
BRAIN.

3450
02:43:07,244 --> 02:43:09,045
AND YOU LET THE ENDS GROW

3451
02:43:09,112 --> 02:43:09,579
TOGETHER AND TRANSMIT THE

3452
02:43:09,646 --> 02:43:11,715
MESSAGE.

3453
02:43:11,781 --> 02:43:15,118
ANOTHER WAY IS ELECTRICAL

3454
02:43:15,185 --> 02:43:15,418
STIMULATION.

3455
02:43:15,485 --> 02:43:19,723
THAT'S HOW NERVES GROW IN UTERO

3456
02:43:19,789 --> 02:43:24,094
AND MAYBE WE CAN DO THAT AGAIN

3457
02:43:24,161 --> 02:43:28,398
OR STEM CELLS ACTING AS A NEURO█

3458
02:43:28,465 --> 02:43:29,833
PROTECTIVE OR BRIDGE THE CELLS

3459
02:43:29,900 --> 02:43:38,942
TOGETHER AND GET THEM TO GROW.

3460
02:43:39,009 --> 02:43:41,912
AND WE GOT ABSTRACTS BEGINNING

3461
02:43:41,978 --> 02:43:45,115
OF MARCH AND SENT OUR NOTICES

3462
02:43:45,182 --> 02:43:46,850
MARCH 20th.

3463
02:43:46,917 --> 02:43:52,722
FULL PROPOSALS AND WE'LL

3464
02:43:52,789 --> 02:43:55,792
HOPEFULLY GET THE PROGRAM GOING.

3465
02:43:55,859 --> 02:44:00,964
BASICALLY WE'LL START OFF WITH

3466
02:44:01,031 --> 02:44:04,100
TECHNOLOGY WITH DEVICES AND HOW

3467
02:44:04,167 --> 02:44:05,068
WE'LL DO SURGERY.

3468
02:44:05,135 --> 02:44:07,737
AT THE END OF DAY IT'S ALL ABOUT

3469
02:44:07,804 --> 02:44:10,440
BRINGING OUR PROGRAMS TO MAKING

3470
02:44:10,507 --> 02:44:13,176
THEM AWARE OF PEOPLE WHO MIGHT

3471
02:44:13,243 --> 02:44:16,012
BENEFIT FROM THIS TRAINING.

3472
02:44:16,079 --> 02:44:17,447
PEOPLE ENGAGING THE COMMUNITY SO

3473
02:44:17,514 --> 02:44:18,748
PEOPLE WHO ARE BLIND AND

3474
02:44:18,815 --> 02:44:23,720
VISUALLY IMPAIRED AND TRAINING

3475
02:44:23,787 --> 02:44:24,054
AND TEACHING.

3476
02:44:24,120 --> 02:44:24,688
FINAL THING IN THE LAST COUPLE

3477
02:44:24,754 --> 02:44:25,522
MINUTES IS TALKING ABOUT

3478
02:44:25,589 --> 02:44:28,258
SOMETHING NEW IN THE AGENCY

3479
02:44:28,325 --> 02:44:29,960
WHICH IS THE SPRINT FOR WOMEN'S

3480
02:44:30,026 --> 02:44:30,627
HEALTH.

3481
02:44:30,694 --> 02:44:33,063
THIS WAS ANNOUNCED SIX WEEKS AGO

3482
02:44:33,129 --> 02:44:35,498
AND THE IDEA IS HOW CAN WE

3483
02:44:35,565 --> 02:44:41,071
QUICKLY BE ABLE TO FUND SOME

3484
02:44:41,137 --> 02:44:42,772
ADVANC

3485
02:44:42,839 --> 02:44:45,008
ADVANCES THIS IS IS COMMITTING

3486
02:44:45,075 --> 02:44:47,611
$100 MILLION AND IT'S A QUICK

3487
02:44:47,677 --> 02:44:50,580
WAY THAT WE PUT OUT FOR REQUEST

3488
02:44:50,647 --> 02:44:52,816
AND THE PROPOSAL DATE WAS IN

3489
02:44:52,882 --> 02:44:53,116
MARCH.

3490
02:44:53,183 --> 02:44:55,719
YOU NEEDED TO SEND THREE PAGES

3491
02:44:55,785 --> 02:44:57,454
WITH A SOLUTION AND THEY'LL BE

3492
02:44:57,520 --> 02:45:00,523
FUNDED IN THE FALL.

3493
02:45:00,590 --> 02:45:02,826
SO JUST AN IDEA HOW WE CAN DO

3494
02:45:02,892 --> 02:45:06,463
THINGS IN A STREAMLINE WAY THAT

3495
02:45:06,529 --> 02:45:09,065
TO TAKE GREAT IDEAS AND GET THEM

3496
02:45:09,132 --> 02:45:11,768
FUNDED TO GET GREAT ADVANCED.

3497
02:45:11,835 --> 02:45:14,738
I'LL FINISH BY A PIECE OF

3498
02:45:14,804 --> 02:45:18,275
ARTWORK WHICH I LOVE WHICH SITS

3499
02:45:18,341 --> 02:45:20,377
IN THE GALLERY IN WASHINGTON,

3500
02:45:20,443 --> 02:45:21,578
D.C. ACROSS FROM THE WHITE

3501
02:45:21,645 --> 02:45:22,145
HOUSE.

3502
02:45:22,212 --> 02:45:23,880
THIS PRESENT MOMENT USED TO BE

3503
02:45:23,947 --> 02:45:26,549
THE UNIMAGINABLE FUTURE.

3504
02:45:26,616 --> 02:45:30,787
YOU THINK ABOUT THINGS TODAY.

3505
02:45:30,854 --> 02:45:35,125
AND I THINK ABOUT THE INTERNET,

3506
02:45:35,191 --> 02:45:38,528
GPS, GRAPHIC USER INTERFACE ON

3507
02:45:38,595 --> 02:45:42,132
OUR COMPUTERS, AUTONOMOUS

3508
02:45:42,198 --> 02:45:44,634
DRIVING CARS WERE UNIMAGINABLE

3509
02:45:44,701 --> 02:45:46,169
YEARS AGO BEHIND NOW MAINSTREAM.

3510
02:45:46,236 --> 02:45:50,307
AT ARPA-H WHAT WARE -- WE'RE

3511
02:45:50,373 --> 02:45:52,442
LOOKING TO DO IS COME UP ONE THE

3512
02:45:52,509 --> 02:45:53,877
SAME ADVANCES THAT YEARS FROM

3513
02:45:53,943 --> 02:45:59,149
NOW PEOPLE SAY MY GOSH, WE USE

3514
02:45:59,215 --> 02:46:03,153
THIS EVERY DAY AND I APPRECIATE

3515
02:46:03,219 --> 02:46:03,420
YOUR TOMB.

3516
02:46:03,486 --> 02:46:13,797
THANKS VERY MUCH.

3517
02:46:18,001 --> 02:46:18,601
WE HAVE TIME FOR A COUPLE OF

3518
02:46:18,668 --> 02:46:28,278
QUESTIONS.

3519
02:46:28,345 --> 02:46:29,546
>> THANK YOU FOR YOUR

3520
02:46:29,612 --> 02:46:30,547
PRESENTATION.

3521
02:46:30,613 --> 02:46:31,881
IT'S EXCITING TO HEAR ABOUT

3522
02:46:31,948 --> 02:46:38,488
ARPA-H'S GOAL.

3523
02:46:38,555 --> 02:46:40,824
SOME OF US PUT IN SOMETHING FOR

3524
02:46:40,890 --> 02:46:43,760
THE PRINT TO WOMEN'S HEALTH.

3525
02:46:43,827 --> 02:46:45,462
IT'S ALWAYS CHALLENGING TO

3526
02:46:45,528 --> 02:46:50,300
FIGURE OUT WHAT CONSTITUTES THAT

3527
02:46:50,367 --> 02:46:52,302
NEXT LEVEL RADICAL CHANGE.

3528
02:46:52,369 --> 02:46:54,304
I THINK YOU PUT IT BEAUTIFULLY

3529
02:46:54,371 --> 02:46:55,505
IN YOUR PRESENTATION.

3530
02:46:55,572 --> 02:46:58,174
I GOT A BETTER SENSE OF WHAT

3531
02:46:58,241 --> 02:47:00,543
THAT RADICAL CHANGE IS.

3532
02:47:00,610 --> 02:47:03,246
IT'S ALWAYS FRUSTRATING TO LOOK

3533
02:47:03,313 --> 02:47:08,952
AT WHAT IS INCREMENTAL AND

3534
02:47:09,018 --> 02:47:10,687
TRANSFORMATIONAL AND WHAT

3535
02:47:10,754 --> 02:47:12,789
POSSIBLE TO FUND AND WHAT ISN'T.

3536
02:47:12,856 --> 02:47:13,890
TWO CLARIFICATIONS.

3537
02:47:13,957 --> 02:47:18,194
SINCE YOU SAID THE PROGRAM

3538
02:47:18,261 --> 02:47:20,497
DIRECTS ARE FUNDED FOR THREE

3539
02:47:20,563 --> 02:47:22,332
YEARS POSSIBLY SIX, DOES THAT

3540
02:47:22,399 --> 02:47:25,101
MEAN WHEN YOU PUT IN A PROPOSAL

3541
02:47:25,168 --> 02:47:27,871
WE SHOULD BE LOOKING AT A

3542
02:47:27,937 --> 02:47:29,706
THREE-ERPROPOSAL THAT WOULD BE

3543
02:47:29,773 --> 02:47:30,440
UNDER THAT PROGRAM DIRECTOR

3544
02:47:30,507 --> 02:47:32,876
BECAUSE YOU'RE IN THE SURE IF

3545
02:47:32,942 --> 02:47:36,713
THAT PROGRAM DIRECTOR WILL HAVE

3546
02:47:36,780 --> 02:47:37,680
ANOTHER THREE YEARS?

3547
02:47:37,747 --> 02:47:39,949
JUST WANT TO CLARIFY WHAT THAT

3548
02:47:40,016 --> 02:47:40,216
MEANS.

3549
02:47:40,283 --> 02:47:45,088
>> THE LENGTH OF TIME OF THE

3550
02:47:45,155 --> 02:47:47,590
PROGRAM AND PROGRAM MANAGERS ARE

3551
02:47:47,657 --> 02:47:50,827
NOT SYNCHRONOUS.

3552
02:47:50,894 --> 02:47:52,529
WHEN MY TIME SUP MY PROGRAMS

3553
02:47:52,595 --> 02:47:54,297
WON'T END.

3554
02:47:54,364 --> 02:47:58,301
THEY'LL PASS TO ANOTHER PROGRAM

3555
02:47:58,368 --> 02:47:58,568
MANAGER.

3556
02:47:58,635 --> 02:48:07,944
AND SO THAT'S A VERY GOOD POINT.

3557
02:48:08,011 --> 02:48:09,112
I'M NOT SURE HOW LONG THEY'RE

3558
02:48:09,179 --> 02:48:10,914
LOOKING FOR PROGRAMS FOR.

3559
02:48:10,980 --> 02:48:13,383
THE PROGRAMS I DEVELOPED ARE

3560
02:48:13,450 --> 02:48:18,321
MOSTLY IN THE THREE TO FIVE YEAR

3561
02:48:18,388 --> 02:48:18,755
TIME FRAME.

3562
02:48:18,822 --> 02:48:21,357
I KNOW FOR THE WOMEN'S PRINT I

3563
02:48:21,424 --> 02:48:23,593
THINK THEY'RE LOOK FOR SHORTER

3564
02:48:23,660 --> 02:48:25,495
TERM PROGRAMS TRYING TO LOOK IF

3565
02:48:25,562 --> 02:48:28,331
THERE AN OPPORTUNITY TO MAKE A

3566
02:48:28,398 --> 02:48:29,899
BIG HIT IN A RELATIVELY SHORT

3567
02:48:29,966 --> 02:48:36,840
PERIOD OF TIME.

3568
02:48:36,906 --> 02:48:46,516
>> THANK YOU.

3569
02:48:46,583 --> 02:48:47,917
>> I'M CURIOUS.

3570
02:48:47,984 --> 02:48:49,452
IS THERE A DOLLAR AMOUNT YOU

3571
02:48:49,519 --> 02:48:51,754
HAVE TO WORK WITHIN FOR THE

3572
02:48:51,821 --> 02:48:52,755
VISION OR IS THE BUDGET

3573
02:48:52,822 --> 02:48:56,860
DEVELOPED AS YOU MOVE ALONG?

3574
02:48:56,926 --> 02:49:00,196
>> SO WHEN I PROPOSED THIS TO

3575
02:49:00,263 --> 02:49:03,032
THE DIRECTOR OF ARPA-H I

3576
02:49:03,099 --> 02:49:03,867
PROPOSED A BUDGET.

3577
02:49:03,933 --> 02:49:08,137
AT THE END OF THE DAY IT'S THE

3578
02:49:08,204 --> 02:49:08,838
DIRECTOR WHO THEN SAYS HOW MUCH

3579
02:49:08,905 --> 02:49:19,382
THAT BUDGET IS GOING TO BE.

3580
02:49:22,318 --> 02:49:25,121
I CREATE THE BUDGET AND SEND IT

3581
02:49:25,188 --> 02:49:28,424
TO MY BOSS.

3582
02:49:28,491 --> 02:49:33,296
MY BOSS SAYS YAY, NAY OR NOT SO

3583
02:49:33,363 --> 02:49:33,897
MUCH VAINED TO THINK WHAT'S

3584
02:49:33,963 --> 02:49:35,999
POSSIBLE WITHIN THE AMOUNT.

3585
02:49:36,065 --> 02:49:37,567
>> SO THERE'S NO LIMIT IT'S JUST

3586
02:49:37,634 --> 02:49:42,405
WHETHER YOU CAN SELL THE IDEA IN

3587
02:49:42,472 --> 02:49:46,142
A WAY YOU CAN CONVINCE EVERYONE

3588
02:49:46,209 --> 02:49:46,609
YOU NEED THAT.

3589
02:49:46,676 --> 02:49:46,843
>> YES.

3590
02:49:46,910 --> 02:49:56,886
THANK YOU.

3591
02:49:56,953 --> 02:49:57,453
>> THANK YOU.

3592
02:49:57,520 --> 02:49:59,455
HOW DO YOU EVALUATE THAT AND HOW

3593
02:49:59,522 --> 02:50:00,323
IMPORTANT IS THAT IN THE

3594
02:50:00,390 --> 02:50:01,190
SELECTION PROCESS AND SECOND

3595
02:50:01,257 --> 02:50:02,592
QUESTION IS HOW DO YOU HANDLE

3596
02:50:02,659 --> 02:50:10,133
THE DATA SHARING?

3597
02:50:10,199 --> 02:50:11,701
>> FIRST QUESTION IS REGARDING

3598
02:50:11,768 --> 02:50:16,739
TEAM SCIENCE AND HAVING THE

3599
02:50:16,806 --> 02:50:17,540
RIGHT TEAM.

3600
02:50:17,607 --> 02:50:19,509
HOW DO YOU

3601
02:50:19,576 --> 02:50:22,512
>> THE KEY TO IF HE PROGRAMS IN

3602
02:50:22,579 --> 02:50:25,515
GENERAL IS THEY'RE TOO BIG FOR

3603
02:50:25,582 --> 02:50:30,787
ANYONE ONE INVESTIGATOR OR

3604
02:50:30,853 --> 02:50:31,154
INSTITUTION.

3605
02:50:31,220 --> 02:50:34,891
THE ONLY WAY THEY'LL BE

3606
02:50:34,958 --> 02:50:37,293
SUCCESSFUL IS IF YOU HAVE A TEAM

3607
02:50:37,360 --> 02:50:38,561
WORKING ON THIS.

3608
02:50:38,628 --> 02:50:39,762
WE PUT OUT THE DESCRIPTION OF

3609
02:50:39,829 --> 02:50:46,235
THE PROGRAM AND INVITE TEAMS TO

3610
02:50:46,302 --> 02:50:49,405
BE FORMED AND WE HAVE PROPOSERS

3611
02:50:49,472 --> 02:50:51,107
DAY FOR INSTITUTIONS AND

3612
02:50:51,174 --> 02:50:51,774
INDIVIDUALS TO COME TOGETHER AND

3613
02:50:51,841 --> 02:51:01,751
FORM TEAMS.

3614
02:51:01,818 --> 02:51:06,889
ARPA-H DOESN'T WANT TO BE THE

3615
02:51:06,956 --> 02:51:07,824
ONE DOING THE ORGANIZATION

3616
02:51:07,890 --> 02:51:08,524
BETWEEN INVESTIGATORS.

3617
02:51:08,591 --> 02:51:12,028
WE WANT THERE TO BE A PRINCIPLE

3618
02:51:12,095 --> 02:51:17,033
INVESTIGATOR NOW RESPONSIBLE FOR

3619
02:51:17,100 --> 02:51:25,942
THE SUB INVESTIGATORS HERE

3620
02:51:26,009 --> 02:51:27,944
THERE'S ONE VOICE SO FORMING

3621
02:51:28,011 --> 02:51:29,946
TEAMS IS REALLY IMPORTANT IN

3622
02:51:30,013 --> 02:51:32,315
TERMS OF HOW WE DO THIS.

3623
02:51:32,382 --> 02:51:37,620
PROPOSERS THERE IS THERE TO

3624
02:51:37,687 --> 02:51:38,287
PROMOTE TEAMS.

3625
02:51:38,354 --> 02:51:40,823
DATA SHARING IS SO IMPORTANT.

3626
02:51:40,890 --> 02:51:41,858
YOU ASK THE QUESTION BECAUSE YOU

3627
02:51:41,924 --> 02:51:45,728
KNOW HOW IMPORTANT DATA SHARING

3628
02:51:45,795 --> 02:51:46,429
IS IMPORTANT.

3629
02:51:46,496 --> 02:51:48,097
WE CARE ABOUT PLATFORMS FOR DATA

3630
02:51:48,164 --> 02:51:49,666
SHARING AND HOW TO SHARE DATA IN

3631
02:51:49,732 --> 02:51:52,101
A WAY THAT'S ACCESSIBLE TO ALL.

3632
02:51:52,168 --> 02:51:53,136
A BIG IMPORTANT COMPONENT.

3633
02:51:53,202 --> 02:51:58,474
THANK YOU FOR THAT.

3634
02:51:58,541 --> 02:52:02,311
>> AT THIS POINT WE NEED IT MOVE

3635
02:52:02,378 --> 02:52:07,684
ON AND GIVE THE FLOOR TO

3636
02:52:07,750 --> 02:52:09,719
DR. CRUZ.

3637
02:52:09,786 --> 02:52:16,526
AND SHE'LL BE TALKING ABOUT THE

3638
02:52:16,592 --> 02:52:19,696
REHABILITATION RESEARCH PLAN

3639
02:52:19,762 --> 02:52:19,962
RFI.

3640
02:52:20,029 --> 02:52:23,366
>> THANK YOU, CAL.

3641
02:52:23,433 --> 02:52:25,501
THE RESEARCH COMMUNITY HAS BEEN

3642
02:52:25,568 --> 02:52:30,206
INTERESTED IN THE SPACE AND IT'S

3643
02:52:30,273 --> 02:52:31,307
BETTER THAN US TRYING TO SELL

3644
02:52:31,374 --> 02:52:37,113
YOUR VISION.

3645
02:52:37,180 --> 02:52:39,348
THANK YOU FOR COMING TODAY AND

3646
02:52:39,415 --> 02:52:40,883
THANK YOU.

3647
02:52:40,950 --> 02:52:43,586
WITH A LITTLE GET BACK ON TIME

3648
02:52:43,653 --> 02:52:50,526
NOT TO WORRY.

3649
02:52:50,593 --> 02:52:52,962
I WANTED TO END OUR AGENDA WITH

3650
02:52:53,029 --> 02:52:58,301
GETTING MORE FEEDBACK FROM YOU.

3651
02:52:58,367 --> 02:53:03,639
I KNOW THIS HAS BEEN GETTING

3652
02:53:03,706 --> 02:53:05,641
ENGAGED BUT I WANT TO MAKE SURE

3653
02:53:05,708 --> 02:53:08,177
YOU HAVE ONE MORE OPPORTUNITY TO

3654
02:53:08,244 --> 02:53:13,316
GIVE YOUR INPUT IN OF A FREE

3655
02:53:13,382 --> 02:53:14,283
FORM VENUE.

3656
02:53:14,350 --> 02:53:15,785
WOOL TALK A LITTLE BIT ABOUT THE

3657
02:53:15,852 --> 02:53:16,519
RESEARCH PLAN AND THE

3658
02:53:16,586 --> 02:53:25,795
CONFERENCE.

3659
02:53:25,862 --> 02:53:30,366
SO WHEN WE ARE ENGAGING WITH THE

3660
02:53:30,433 --> 02:53:32,769
PUB LUCK WHERE WE WANT INPUT THE

3661
02:53:32,835 --> 02:53:38,407
FIRST THING WE DO IS PUT OUT A

3662
02:53:38,474 --> 02:53:41,110
REQUEST FOR INFORMATION WE'VE

3663
02:53:41,177 --> 02:53:43,579
TRIED DIFFERENT FORMATS AND THE

3664
02:53:43,646 --> 02:53:44,881
BASIC NOTICE GOES OUT AND PUT

3665
02:53:44,947 --> 02:53:46,716
ONE OUT IN FEBRUARY.

3666
02:53:46,783 --> 02:53:48,718
IT WAS OPEN ABOUT SIX WEEKS.

3667
02:53:48,785 --> 02:53:49,352
PEOPLE CAN STILL E-MAIL ME.

3668
02:53:49,418 --> 02:53:54,257
IT'S FINE.

3669
02:53:54,323 --> 02:53:55,691
WE ASKED A SERIES OF QUESTIONS

3670
02:53:55,758 --> 02:53:59,662
AND RELATING BACK TO OUR 2016

3671
02:53:59,729 --> 02:54:01,664
AND 2021 PLAN.

3672
02:54:01,731 --> 02:54:05,401
HOW DID THE COMMUNITY PERCEIVE

3673
02:54:05,468 --> 02:54:07,870
OUR PROGRESS TOWARDS THE GOALS

3674
02:54:07,937 --> 02:54:12,742
IN OUR RESEARCH PLAN.

3675
02:54:12,809 --> 02:54:15,745
WHAT AREAS OF RESEARCH SHOULD WE

3676
02:54:15,812 --> 02:54:16,579
BE CONSIDERING FOR THE NEXT

3677
02:54:16,646 --> 02:54:16,846
PLAN.

3678
02:54:16,913 --> 02:54:18,881
DO WE STILL NEED TO CONTINUE?

3679
02:54:18,948 --> 02:54:24,487
WHAT SHOULD WE RETAIN FROM OUR

3680
02:54:24,554 --> 02:54:29,091
CURRENT PLAN ARE THERE NEW AREAS

3681
02:54:29,158 --> 02:54:34,530
OF IMPACT FOR THE FUTURE AND ARE

3682
02:54:34,597 --> 02:54:35,932
THERE FOCUSES AREAS TO MAKE A

3683
02:54:35,998 --> 02:54:41,070
BIG DIFFERENCE IF WE APPLIES

3684
02:54:41,137 --> 02:54:44,040
RESOURCES AND EFFORTS IN THE

3685
02:54:44,106 --> 02:54:45,441
SHORT TERM.

3686
02:54:45,508 --> 02:54:49,145
THOSE ARE THE QUESTIONS WITH PUT

3687
02:54:49,212 --> 02:54:49,412
OUT.

3688
02:54:49,478 --> 02:54:52,315
I WANT TO THANK OUR CONTRACTORS

3689
02:54:52,381 --> 02:54:56,252
WHO HELPED ME PULL ALL THESE

3690
02:54:56,319 --> 02:54:56,886
RESPONSES TOGETHER AND KEEP ME

3691
02:54:56,953 --> 02:55:03,059
ORGANIZED.

3692
02:55:03,125 --> 02:55:06,929
THANK YOU TO VICKY AND DANIEL.

3693
02:55:06,996 --> 02:55:08,397
WE GOT 24 RESPONSE WHICH IS IS

3694
02:55:08,464 --> 02:55:10,533
WHAT WE USUALLY GET WHEN WE PUT

3695
02:55:10,600 --> 02:55:13,736
OUT AN RFI.

3696
02:55:13,803 --> 02:55:14,270
POST CAME FROM INDIVIDUAL

3697
02:55:14,337 --> 02:55:22,144
RESEARCHERS.

3698
02:55:22,211 --> 02:55:27,984
WE GOT SOME FROM BIGGER GROUPS

3699
02:55:28,050 --> 02:55:30,553
RESEARCH SPEAKING WITH ONE VOICE

3700
02:55:30,620 --> 02:55:33,122
FROM A RESEARCH INSTITUTION AND

3701
02:55:33,189 --> 02:55:37,260
A HANDFUL FROM WHAT WE CALLED

3702
02:55:37,326 --> 02:55:38,861
SPECIAL INTEREST AND FOUNDATIONS

3703
02:55:38,928 --> 02:55:44,200
OR GROUPS REPRESENTING GROUPS OF

3704
02:55:44,267 --> 02:55:46,068
PEOPLE THIS IS TYPICAL OF WHAT

3705
02:55:46,135 --> 02:55:54,210
WE SEE WHEN WE PUT OUT RFIs.

3706
02:55:54,477 --> 02:55:55,411
HUGE THANKS TO EVERYBODY WHO

3707
02:55:55,478 --> 02:55:55,678
RESPONDED.

3708
02:55:55,745 --> 02:56:03,386
IT'S HELPFUL GET THE INPUT EARLY

3709
02:56:03,452 --> 02:56:04,520
IN THE PROCESS.

3710
02:56:04,587 --> 02:56:06,889
THIS ISN'T THE ONLY OPPORTUNITY

3711
02:56:06,956 --> 02:56:13,930
TO PROVIDE FEEDBACK IN THE PLAN.

3712
02:56:13,996 --> 02:56:14,830
WE'LL TALK MORE ABOUT THE TIME

3713
02:56:14,897 --> 02:56:25,241
LINE GOING FORWARD.

3714
02:56:27,977 --> 02:56:29,111
THE MAJORITY WERE AROUND WHAT

3715
02:56:29,178 --> 02:56:31,681
ARE NEW PRIORITIES TO PUT IN THE

3716
02:56:31,747 --> 02:56:32,949
NEXT RESEARCH PLAN.

3717
02:56:33,015 --> 02:56:38,120
REMEMBER, WE'VE HAD THE SAME

3718
02:56:38,187 --> 02:56:44,894
THEMES FOUR EIGHT YEAR NOW AND I

3719
02:56:44,961 --> 02:56:48,197
EXPECTED NEW IDEAS ABOUT WHERE

3720
02:56:48,264 --> 02:56:49,198
WE SHOULD BE PUTTING EMPHASIS IN

3721
02:56:49,265 --> 02:56:59,775
THE NEXT RESEARCH PLAN.

3722
02:56:59,842 --> 02:57:00,576
THE OTHERS WERE ADDRESSED BY ONE

3723
02:57:00,643 --> 02:57:04,513
REPUBLICAN ENT.

3724
02:57:04,580 --> 02:57:12,221
-- RESPONDENT.

3725
02:57:12,288 --> 02:57:15,224
WE TRIED TO MAKE IT EASIER.

3726
02:57:15,291 --> 02:57:18,227
THE THEMES THAT CAME OUT FROM

3727
02:57:18,294 --> 02:57:20,029
THE 24 RESPONSES.

3728
02:57:20,096 --> 02:57:21,764
THE FIRST ONE WHICH I DON'T

3729
02:57:21,831 --> 02:57:26,902
THINK IS A SURPRISE IS THAT

3730
02:57:26,969 --> 02:57:30,306
THERE WAS A REQUEST FOR

3731
02:57:30,373 --> 02:57:33,109
REINSTATING THE K-12 PROGRAM NAP

3732
02:57:33,175 --> 02:57:34,677
RELATES TO OUR THEME ON

3733
02:57:34,744 --> 02:57:35,277
TRAINING, CAREER DEVELOPMENT,

3734
02:57:35,344 --> 02:57:45,621
INFRASTRUCTURE.

3735
02:57:48,758 --> 02:57:49,792
WE COVERED THAT AND THE

3736
02:57:49,859 --> 02:57:53,062
IMPORTANCE OF GENETIC STUDIES

3737
02:57:53,129 --> 02:57:56,599
AND MAYBE WE'LL BROADEN THAT TO

3738
02:57:56,665 --> 02:57:57,767
OMICS AND HAD PEOPLE TO COMMENT

3739
02:57:57,833 --> 02:57:59,101
ON THAT AND THE ROLE IN

3740
02:57:59,168 --> 02:58:07,676
REHABILITATION.

3741
02:58:07,743 --> 02:58:11,147
HEALTH DISPARITIES AND

3742
02:58:11,213 --> 02:58:15,918
ASSOCIATES OF HEALTH.

3743
02:58:15,985 --> 02:58:21,257
THE FOURTH WAS AROUND THE

3744
02:58:21,323 --> 02:58:24,727
ORDINANCE OF BASIC SCIENCE TO DO

3745
02:58:24,794 --> 02:58:29,465
THE MECCIST

3746
02:58:32,134 --> 02:58:35,671
MECHANISTIC SCIENCE FIRST.

3747
02:58:35,738 --> 02:58:38,674
AND THIS WAS A TECHNOLOGY

3748
02:58:38,741 --> 02:58:38,974
CONTINGENCE.

3749
02:58:39,041 --> 02:58:43,979
I GROUPED SEVERAL OF THOSE

3750
02:58:44,046 --> 02:58:47,183
TOPICS BUT TECHNOLOGY, SENSORS,

3751
02:58:47,249 --> 02:58:48,751
TELEHEALTH, COMMERCIALIZATION

3752
02:58:48,818 --> 02:58:58,027
WAS A THEME THAT CAME THROUGH.

3753
02:58:58,094 --> 02:59:00,162
THE SIXTH THAT CAME THROUGH THEY

3754
02:59:00,229 --> 02:59:05,334
WERE TALKING ABOUT THE LOCATION

3755
02:59:05,401 --> 02:59:08,137
THAT THE REHAB WAS DELIVERED IN

3756
02:59:08,204 --> 02:59:09,438
WHICH WAS A LITTLE BIT OF A

3757
02:59:09,505 --> 02:59:10,072
DIFFERENT SPIN THAN WE TALKED

3758
02:59:10,139 --> 02:59:13,075
ABOUT BEFORE.

3759
02:59:13,142 --> 02:59:13,542
THAT VARIES.

3760
02:59:13,609 --> 02:59:15,211
SOME PEOPLE WERE TALKING ABOUT

3761
02:59:15,277 --> 02:59:20,116
THE IMPORTANCE OF ENGAGING IN

3762
02:59:20,182 --> 02:59:20,950
RESEARCH IN LOW AND MIDDLE

3763
02:59:21,016 --> 02:59:21,884
INCOME COUNTRIES.

3764
02:59:21,951 --> 02:59:23,786
OTHERS WERE TALKING ABOUT REHAB

3765
02:59:23,853 --> 02:59:25,621
DELIVERED IN ACUTE CARE,

3766
02:59:25,688 --> 02:59:30,292
INTENSIVE CARE UNITS AND SKILLED

3767
02:59:30,359 --> 02:59:32,595
NURSING FACILITIES AND ALL THESE

3768
02:59:32,661 --> 02:59:34,430
DIFFERENT PLACES.

3769
02:59:34,497 --> 02:59:39,635
SO I GROUPED THOSE UNDER THE

3770
02:59:39,702 --> 02:59:43,839
HEADING OF LOCATION THERE WAS A

3771
02:59:43,906 --> 02:59:46,542
REMINDER THAT NIH NEEDS TO

3772
02:59:46,609 --> 02:59:48,410
COLLABORATE AND I HOPE THROUGH

3773
02:59:48,477 --> 02:59:54,817
THE MEETING YOU SAW EXAMPLES OF

3774
02:59:54,884 --> 02:59:58,187
COLLABORATION I HOPE IT SEEDED

3775
02:59:58,254 --> 03:00:03,626
IDEAS OF COLLABORATION BUT

3776
03:00:03,692 --> 03:00:06,228
PARTICULARLY COLLABORATIONS WITH

3777
03:00:06,295 --> 03:00:07,229
THE WORLD HEALTH ORGANIZATION.

3778
03:00:07,296 --> 03:00:13,636
WE HAVE BEEN SUPPORTIVE OF THE

3779
03:00:13,702 --> 03:00:17,673
REHAB 2030.

3780
03:00:17,740 --> 03:00:26,615
I WAS GOING GET THE YEAR WRONG.

3781
03:00:26,682 --> 03:00:28,517
THIS RESEARCH PLAN AND THERE'S

3782
03:00:28,584 --> 03:00:29,785
ANOTHER ORGANIZATION THAT WAS

3783
03:00:29,852 --> 03:00:32,855
CALLED OUT THAT HUN SHOULD BE

3784
03:00:32,922 --> 03:00:35,057
WORKING HIGH PRESSURE

3785
03:00:38,561 --> 03:00:42,665
NIH SHOULD BE WORK MORE WITH.

3786
03:00:42,731 --> 03:00:43,666
AND THEME EIGHT I GROUPED A LOT

3787
03:00:43,732 --> 03:00:47,836
OF DIFFERENT TOPICS THAT ALL HAD

3788
03:00:47,903 --> 03:00:50,105
TO DO WITH SECONDARY CONDITIONS

3789
03:00:50,172 --> 03:00:51,407
OR HEALTH IN GENERAL FOR PEOPLE

3790
03:00:51,473 --> 03:00:56,212
WITH DISABILITIES.

3791
03:00:56,278 --> 03:00:57,947
PARTICULARLY CALLED OUT WAS THE

3792
03:00:58,013 --> 03:00:58,914
IMPORTANCE OF CARDIOVASCULAR

3793
03:00:58,981 --> 03:01:07,389
HEALTH, PHYSICAL ACTIVITY,

3794
03:01:07,456 --> 03:01:10,526
MEDICATION ADHERENCE, FUNCTIONAL

3795
03:01:10,593 --> 03:01:10,793
COGNITION.

3796
03:01:10,859 --> 03:01:14,396
I REALIZE THOSE ARE DISPARATE

3797
03:01:14,463 --> 03:01:19,401
BUT I LUMPED THEM TOGETHER IN

3798
03:01:19,468 --> 03:01:23,105
HEATH ACTIVITIES MAYBE NOT

3799
03:01:23,172 --> 03:01:25,241
NECESSARILY TIED TO IMPAIRMENT.

3800
03:01:25,307 --> 03:01:33,782
THE LAST THING ISN'T REALLY

3801
03:01:33,849 --> 03:01:37,720
SOMETHING MCRR CAN EXECUTE THERE

3802
03:01:37,786 --> 03:01:40,522
WERE CALLS FOR A DISABILITY

3803
03:01:40,589 --> 03:01:42,291
RESEARCH OFFICE.

3804
03:01:42,358 --> 03:01:45,027
THAT WAS A RECOMMENDATION THAT

3805
03:01:45,094 --> 03:01:49,098
WENT TO THE NIH DIRECTOR AS PART

3806
03:01:49,164 --> 03:01:52,635
OF THE ADVISORY COUNCIL TO THE

3807
03:01:52,701 --> 03:01:54,103
DIRECTOR'S REPORT ON DISABILITY

3808
03:01:54,169 --> 03:01:55,804
ABOUT 18 MONTHS AGO.

3809
03:01:55,871 --> 03:01:58,073
SO THAT RECOMMENDATION IS STILL

3810
03:01:58,140 --> 03:02:02,778
OUT THERE AND WE DID GET SOME

3811
03:02:02,845 --> 03:02:03,379
COMMENTS REMINDING NIH ABOUT

3812
03:02:03,445 --> 03:02:13,789
THAT RECOMMENDATION.

3813
03:02:22,531 --> 03:02:24,800
THESE ARE REINSTATING ACTIONS IN

3814
03:02:24,867 --> 03:02:25,501
REGARD TO THE THEMES.

3815
03:02:25,567 --> 03:02:31,173
I DON'T THINK WE NEED TO REPEAT

3816
03:02:31,240 --> 03:02:41,717
THEM BUT WE USE THE TERM BASIC

3817
03:02:41,784 --> 03:02:45,187
EXPERIMENTAL STUDIES IN HUMANS

3818
03:02:45,254 --> 03:02:45,988
ACKNOWLEDGING THERE'S

3819
03:02:46,055 --> 03:02:48,190
MECHANISTIC WORK THAT NEEDS TO

3820
03:02:48,257 --> 03:02:54,830
BE DONE IN HUMAN SUBJECTS, IN

3821
03:02:54,897 --> 03:03:05,441
REHAB AND OPERATIONALIZES SOME

3822
03:03:07,609 --> 03:03:14,683
OF THOSE THEMES SO THANK YOU.

3823
03:03:14,750 --> 03:03:20,723
I'D LIKE A BIT OF A CONVERSATION

3824
03:03:20,789 --> 03:03:20,989
HERE.

3825
03:03:21,056 --> 03:03:22,324
CAN I GET YOUR REACTIONS.

3826
03:03:22,391 --> 03:03:24,259
ARE THERE ANY SURPRISES BY WHAT

3827
03:03:24,326 --> 03:03:25,728
CAME IN?

3828
03:03:25,794 --> 03:03:29,765
ARE THERE THINGS YOU'RE

3829
03:03:29,832 --> 03:03:40,309
SURPRISED THAT WAS MISSING

3830
03:03:46,615 --> 03:03:46,749
MICHELLE.

3831
03:03:46,815 --> 03:03:49,218
>> I DON'T THINK I WAS

3832
03:03:49,284 --> 03:03:54,323
NECESSARILY SURPRISED BY

3833
03:03:54,390 --> 03:04:02,664
ANYTHING PER SE.

3834
03:04:02,731 --> 03:04:04,433
I WASN'T SURPRISED BY ANYTHING

3835
03:04:04,500 --> 03:04:10,105
BUT I WAS PLEASANTLY ENCOURAGED

3836
03:04:10,172 --> 03:04:12,107
TO SEE THE LOCATION PIECE.

3837
03:04:12,174 --> 03:04:13,509
THAT'S SOMETHING I'M PASSIONATE

3838
03:04:13,575 --> 03:04:20,382
ABOUT IS DEALING WITH REHAB IN

3839
03:04:20,449 --> 03:04:22,618
LOW RESOURCED SETTINGS AND

3840
03:04:22,684 --> 03:04:25,187
WANTED TO SEE THEM COME UP

3841
03:04:25,254 --> 03:04:25,888
SETTINGS WITHOUT SIDE THE

3842
03:04:25,954 --> 03:04:28,824
HOSPITAL THAT HAVE COME UP

3843
03:04:28,891 --> 03:04:29,057
BEFORE.

3844
03:04:29,124 --> 03:04:31,827
THIS CENTRIC IF YOU'RE THING

3845
03:04:31,894 --> 03:04:36,999
ABOUT REHAB FOR ALL, HOW DO WE

3846
03:04:37,065 --> 03:04:38,400
RESOURCE SETTINGS.

3847
03:04:38,467 --> 03:04:40,569
THAT WAS -- I HOPE THAT WOULD

3848
03:04:40,636 --> 03:04:42,671
HAVE COME UP BUT THAT WAS

3849
03:04:42,738 --> 03:04:44,440
PLEASANT TO SEE THERE WERE OTHER

3850
03:04:44,506 --> 03:04:52,014
PEOPLE SEEKING THAT SPACE.

3851
03:04:52,080 --> 03:04:53,916
I WAS SURPRISED TO SEE THE

3852
03:04:53,982 --> 03:04:58,854
REQUEST FOR DISABILITY RESEARCH

3853
03:04:58,921 --> 03:05:02,458
OFFICE BUT I'M NOT SURE HOW IS

3854
03:05:02,524 --> 03:05:03,992
NA DIFFERENT FROM THE OTHER

3855
03:05:04,059 --> 03:05:04,393
ACTIONS.

3856
03:05:04,460 --> 03:05:09,531
I WASN'T QUITE SURE WHAT THAT

3857
03:05:09,598 --> 03:05:14,069
WAS ABOUT BUT IT'S NOT LIKE

3858
03:05:14,136 --> 03:05:15,671
SURPRISE, SURPRISE BIT A BIT OF

3859
03:05:15,737 --> 03:05:18,373
A PUZZLE LIKE WHAT WAS THAT

3860
03:05:18,440 --> 03:05:21,143
ABOUT?

3861
03:05:21,210 --> 03:05:24,580
THOSE ARE MY COMMENTS.

3862
03:05:24,646 --> 03:05:25,848
IN THE NIH OFFICE OF THE

3863
03:05:25,914 --> 03:05:26,748
DIRECTOR, THE OFFICE OF RESEARCH

3864
03:05:26,815 --> 03:05:28,717
ON WOMEN'S HEALTH, THE OFFICE OF

3865
03:05:28,784 --> 03:05:29,885
BEHAVIORAL AND SOCIAL SCIENCE,

3866
03:05:29,952 --> 03:05:35,324
THE OFFICE OF DISEASE

3867
03:05:35,390 --> 03:05:39,094
PREVENTION, OF NUTRITION OF

3868
03:05:39,161 --> 03:05:45,133
TRIBAL HEALTH, SEXUAL AND GENDER

3869
03:05:45,200 --> 03:05:45,434
MINORITIES.

3870
03:05:45,501 --> 03:05:47,669
THERE'S A PROPOSAL TO PUT A

3871
03:05:47,736 --> 03:05:48,770
DISABILITY OFFICE THERE.

3872
03:05:48,837 --> 03:05:52,074
WE HAD NOT MOVED ON THAT BUT

3873
03:05:52,140 --> 03:05:54,476
THAT HAS COME UP.

3874
03:05:54,543 --> 03:05:58,547
THAT IS WHAT THAT'S REFERRING

3875
03:05:58,614 --> 03:05:58,847
TO.

3876
03:05:58,914 --> 03:06:00,415
>> WHAT DOES THAT DO DIFFERENTLY

3877
03:06:00,482 --> 03:06:01,683
TO HAVE THAT OFFICE IDENTIFIED

3878
03:06:01,750 --> 03:06:06,388
THERE.

3879
03:06:06,455 --> 03:06:08,991
>> EACH OFFICE HAS A DIFFERENT

3880
03:06:09,057 --> 03:06:12,861
MISSION BUT THEY'RE GENERALLY

3881
03:06:12,928 --> 03:06:17,099
INSTRUCTED TO COORDINATE AMONGST

3882
03:06:17,165 --> 03:06:19,167
NIH INSTITUTES.

3883
03:06:19,234 --> 03:06:22,804
SO BEHAVIORAL HEALTH FALLS

3884
03:06:22,871 --> 03:06:24,773
ACROSS INSTITUTES AND YOU HAVE

3885
03:06:24,840 --> 03:06:26,441
THE ONE PLACE TO COORDINATE AND

3886
03:06:26,508 --> 03:06:29,878
PUT TOGETHER STRATEGY PLANS.

3887
03:06:29,945 --> 03:06:40,289
-- STRATEGIC PLANS.

3888
03:06:41,823 --> 03:06:44,793
>> FRANCISCO.

3889
03:06:44,860 --> 03:06:47,930
>> I WAS A LITTLE BIT -- CAN YOU

3890
03:06:47,996 --> 03:06:48,363
HEAR ME OKAY?

3891
03:06:48,430 --> 03:06:49,731
>> YES.

3892
03:06:49,798 --> 03:06:52,634
>> I WAS A LITTLE BIT SURPRISED

3893
03:06:52,701 --> 03:06:54,703
AT THE FACT THAT THE 24 TOTAL

3894
03:06:54,770 --> 03:07:00,142
RESPONSES.

3895
03:07:00,208 --> 03:07:04,846
THAT MAY NOT BE A REPRESENTATIVE

3896
03:07:04,913 --> 03:07:05,847
SAMPLE.

3897
03:07:05,914 --> 03:07:07,416
TYPICALLY AS THESE THINGS GO,

3898
03:07:07,482 --> 03:07:11,820
PEOPLE WHO ARE SATISFIED WITH

3899
03:07:11,887 --> 03:07:12,854
THINGS OFTEN DON'T RESPOND OR

3900
03:07:12,921 --> 03:07:18,160
MAYBE MANY DIDN'T KNOW ABOUT IT.

3901
03:07:18,226 --> 03:07:21,964
I WOULD CAUTION AGAINST TAKING

3902
03:07:22,030 --> 03:07:26,034
THESE A TRULY REPRESENTATIVE

3903
03:07:26,101 --> 03:07:26,268
SAMPLE.

3904
03:07:26,335 --> 03:07:31,340
OF COURSE THEY'RE ALL VALID AND

3905
03:07:31,406 --> 03:07:35,477
I THINK PERHAPS MAYBE A SECOND

3906
03:07:35,544 --> 03:07:38,880
ROUND OR MORE FREQUENT SAMPLING

3907
03:07:38,947 --> 03:07:40,582
OF THE COMMUNITY COULD BE

3908
03:07:40,649 --> 03:07:42,250
ADVISEDABLE.

3909
03:07:42,317 --> 03:07:43,952
-- ADVISABLE.

3910
03:07:44,019 --> 03:07:44,453
>> ABSOLUTELY.

3911
03:07:44,519 --> 03:07:47,789
THIS IS ONE DATA POINT.

3912
03:07:47,856 --> 03:07:58,400
SO I WILL BE DOING A ROAD SHOW.

3913
03:08:00,202 --> 03:08:01,336
WE HAVE CONFERENCES SET UP FOR

3914
03:08:01,403 --> 03:08:03,472
THE FALL TO GET MORE INPUT AND

3915
03:08:03,538 --> 03:08:05,607
WHEN WE GET TO THE NEXT STEPS

3916
03:08:05,674 --> 03:08:09,311
WE'LL TALK MORE ABOUT OTHER

3917
03:08:09,378 --> 03:08:10,412
OPPORTUNITIES BUT YES, THERE

3918
03:08:10,479 --> 03:08:12,581
WILL BE MORE OPPORTUNITIES TO

3919
03:08:12,648 --> 03:08:14,282
GET FEEDBACK.

3920
03:08:14,349 --> 03:08:15,283
POINT WELL TAKEN.

3921
03:08:15,350 --> 03:08:16,618
THESE ARE THE FIRST VOICES NOT

3922
03:08:16,685 --> 03:08:26,962
THE ONLY VOICES.

3923
03:08:34,569 --> 03:08:34,603
BOB.

3924
03:08:34,670 --> 03:08:36,438
>> CAN YOU HEAR ME?

3925
03:08:36,505 --> 03:08:39,141
I WAS HAPPY TO SEE THE EMBRACING

3926
03:08:39,207 --> 03:08:45,113
OF TRANSLATION FROM BASIC

3927
03:08:45,180 --> 03:08:47,983
RESEARCH AND HUMAN WAS IN THE

3928
03:08:48,050 --> 03:08:52,320
BASIC.

3929
03:08:52,387 --> 03:09:00,796
I THINK IT'S IMPORTANT TO

3930
03:09:00,862 --> 03:09:02,464
EMPHASIZE THE INVASIVE AND STUDY

3931
03:09:02,531 --> 03:09:04,566
THE MECHANISMS IN A MORE

3932
03:09:04,633 --> 03:09:06,101
CONTROLLED MANNER ALL THE WAY TO

3933
03:09:06,168 --> 03:09:07,169
THE CLINIC.

3934
03:09:07,235 --> 03:09:10,272
AND I WOULD WANT TO EMPHASIZE

3935
03:09:10,338 --> 03:09:11,940
THAT I THINK A LOT OF PEOPLE IN

3936
03:09:12,007 --> 03:09:17,979
THE COMMITTEE COME FROM THIS

3937
03:09:18,046 --> 03:09:18,280
PERSPECTIVE.

3938
03:09:18,346 --> 03:09:19,981
MAYBE MANY HAVE WORKED

3939
03:09:20,048 --> 03:09:21,116
CLINICALLY AND REALIZE THE

3940
03:09:21,183 --> 03:09:22,284
INTERVENTIONS DEVELOPED DON'T

3941
03:09:22,350 --> 03:09:29,791
REALLY HAVE GREAT MECHANISMS

3942
03:09:29,858 --> 03:09:31,526
ESPECIALLY IN NEURO REHAB AND

3943
03:09:31,593 --> 03:09:39,634
COMING UP WITH TECHNOLOGIES LIKE

3944
03:09:39,701 --> 03:09:40,902
NEUROIMMODULATION AND WE DON'T

3945
03:09:40,969 --> 03:09:49,411
HAVE THE INFORMATION AND I THINK

3946
03:09:49,478 --> 03:09:51,113
KEEPING UP WITH THE TECHNOLOGY

3947
03:09:51,179 --> 03:09:53,682
IS DEPENDENT ON THE INFORMATION

3948
03:09:53,749 --> 03:09:55,250
OF THE MECHANISMS THAT UNDER LIE

3949
03:09:55,317 --> 03:09:56,351
THE MECHANISM OF THE

3950
03:09:56,418 --> 03:09:59,121
TECHNOLOGIES AND APPROACHES TO

3951
03:09:59,187 --> 03:10:00,455
CHANGING ULTIMATELY BEHAVIORS

3952
03:10:00,522 --> 03:10:08,163
AND FUNCTIONALITY.

3953
03:10:08,230 --> 03:10:09,598
>> THANKS, BOB.

3954
03:10:09,664 --> 03:10:10,766
YOU'LL RECALL OUR CURRENT PLAN

3955
03:10:10,832 --> 03:10:12,033
HAS TRANSLATIONAL RESEARCH AS

3956
03:10:12,100 --> 03:10:12,868
ONE OF THE THEMES.

3957
03:10:12,934 --> 03:10:21,143
THAT MAY BE ONE THAT WE RETITLE

3958
03:10:21,209 --> 03:10:25,147
OR RE-EDIT BUT MAY WANT TO

3959
03:10:25,213 --> 03:10:35,357
RETAIN.

3960
03:10:40,896 --> 03:10:45,133
>> I WAS HAPPY TO SEE THAT LAND

3961
03:10:45,200 --> 03:10:47,569
AND IF I'M SOUNDING A LITTLE TOO

3962
03:10:47,636 --> 03:10:49,704
SPECIFIC TAKE IT WITH A GRAIN OF

3963
03:10:49,771 --> 03:10:50,972
SALT AND GOOD FORWARD.

3964
03:10:51,039 --> 03:10:56,278
ONE THING THAT WASN'T MENTIONED

3965
03:10:56,344 --> 03:11:01,950
THAT I THINK DOES A GOOD JOB OF

3966
03:11:02,017 --> 03:11:07,489
IN RESEARCH IS LEARNING AND

3967
03:11:07,556 --> 03:11:09,024
APPLYING THINKINGS GAINED IN ONE

3968
03:11:09,090 --> 03:11:13,461
AREA TO ANOTHER AREA.

3969
03:11:13,528 --> 03:11:14,596
FOR EXAMPLE, MOTOR COMPANIES I

3970
03:11:14,663 --> 03:11:16,464
THINK OF THAT HERE IN DETROIT

3971
03:11:16,531 --> 03:11:18,733
COME UP ONE A GOOD WAY TO DO

3972
03:11:18,800 --> 03:11:20,602
SOMETHING AND YET SOMEBODY ELSE

3973
03:11:20,669 --> 03:11:23,405
IN THE SAME COMPANY ISN'T TAKING

3974
03:11:23,471 --> 03:11:26,241
ADVANTAGE OF THAT KNOWLEDGE THAT

3975
03:11:26,308 --> 03:11:29,110
HAS BEEN GAINED BECAUSE THERE'S

3976
03:11:29,177 --> 03:11:32,647
NOT A METHOD IN DETERMINING HOW

3977
03:11:32,714 --> 03:11:33,648
TO EASILY SHARE LEARNINGS.

3978
03:11:33,715 --> 03:11:35,684
YOU WOULD THINK OF THAT IN

3979
03:11:35,750 --> 03:11:37,118
DISABILITY RESEARCH AS WELL.

3980
03:11:37,185 --> 03:11:39,654
HOW DO WE SHARE OUR LEARNINGS

3981
03:11:39,721 --> 03:11:40,622
AND HELP PEOPLE UNDERSTAND THIS

3982
03:11:40,689 --> 03:11:43,191
CAN APPLY TO OUR AREA.

3983
03:11:43,258 --> 03:11:44,192
NOT SURE WHAT BUCKET THAT FALLS

3984
03:11:44,259 --> 03:11:47,696
IN BUT I THINK YOU HAVE A FEEL.

3985
03:11:47,762 --> 03:11:49,030
THAT MAY BE MORE SPECIFIC THAN

3986
03:11:49,097 --> 03:11:52,567
YOU WANT BUT THAT WAS MY FIRST

3987
03:11:52,634 --> 03:11:54,002
THOUGHT.

3988
03:11:54,069 --> 03:11:55,537
MY SECOND THOUGHT SI WAS PLEASED

3989
03:11:55,604 --> 03:12:00,242
TO SEE YOU HAD A CARDIOVASCULAR

3990
03:12:00,308 --> 03:12:10,852
SLANT ON ONE OF THE BUCKETS.

3991
03:12:10,919 --> 03:12:15,490
HE HAD MADE THE THINK

3992
03:12:15,557 --> 03:12:16,558
CARDIOVASCULAR, PULMONARY

3993
03:12:16,625 --> 03:12:19,594
SPEECH, THESE ARE NOT

3994
03:12:19,661 --> 03:12:21,763
NECESSARILY NSK BUT STILL HAVE

3995
03:12:21,830 --> 03:12:24,599
HUGE DISABILITY ASSOCIATED WITH

3996
03:12:24,666 --> 03:12:29,905
THAT THAT ADLs ARE COMPROMISED

3997
03:12:29,971 --> 03:12:33,975
AS A RESULT AND AN INTENTION OF

3998
03:12:34,042 --> 03:12:39,247
THAT IS -- RETURN TO WORK

3999
03:12:39,314 --> 03:12:42,651
RESEARCH WITH DISABLES VIA

4000
03:12:42,717 --> 03:12:45,186
CARDIAC OR PULMONARY OR SPEECH.

4001
03:12:45,253 --> 03:12:47,188
VERY LITTLE IN THAT AREA.

4002
03:12:47,255 --> 03:12:48,223
MY TWO SPECIFIC THOUGHTS MAY BE

4003
03:12:48,290 --> 03:12:54,729
MORE THAN YOU WANTED BUT I

4004
03:12:54,796 --> 03:12:57,132
COMMEND YOU FOR GETTING █IT

4005
03:12:57,198 --> 03:12:58,266
ORGANIZED.

4006
03:12:58,333 --> 03:12:59,567
I MUST HAVE BEEN TOUGH.

4007
03:12:59,634 --> 03:13:01,136
>> THANK YOU.

4008
03:13:01,202 --> 03:13:06,541
I DON'T KNOW HOW WELL I DID IT

4009
03:13:06,608 --> 03:13:10,578
BUT THANK YOU FOR THE COMMENTS.

4010
03:13:10,645 --> 03:13:14,916
WHAT IS OFTEN COMING UP AND WE

4011
03:13:14,983 --> 03:13:16,084
HAD AN TERN TRAINING ON

4012
03:13:16,151 --> 03:13:16,584
IMPLEMENTATION SCIENCE.

4013
03:13:16,651 --> 03:13:18,486
I CAN SEA THAT CONNECTING WITH

4014
03:13:18,553 --> 03:13:21,756
YOUR POINT ABOUT WELL, LEARNING

4015
03:13:21,823 --> 03:13:26,127
HOW TO IMPLEMENT OR DE-IMPLEMENT

4016
03:13:26,194 --> 03:13:35,670
TO BOB'S COMMENT SURFACES AND

4017
03:13:35,737 --> 03:13:35,971
TECHNIQUES.

4018
03:13:36,037 --> 03:13:39,941
WE'RE NOT DONE AND CAN WE BORROW

4019
03:13:40,008 --> 03:13:40,976
STRATEGIES FROM OTHER PLACES IS

4020
03:13:41,042 --> 03:13:41,309
A GREAT POINT.

4021
03:13:41,376 --> 03:13:51,553
THANK YOU.

4022
03:13:55,991 --> 03:13:56,424
KATHY.

4023
03:13:56,491 --> 03:13:58,460
>> I'M NOT SURE IF WHAT I'M

4024
03:13:58,526 --> 03:13:59,594
THINKING ABOUT IS ALREADY

4025
03:13:59,661 --> 03:14:02,130
INCORPORATED IN THE LINES BUT I

4026
03:14:02,197 --> 03:14:03,698
WAS THINKING THROUGH INFORMATION

4027
03:14:03,765 --> 03:14:07,502
OR ADDRESSING THE IMPACT OF

4028
03:14:07,569 --> 03:14:08,370
COMORBIDITIES.

4029
03:14:08,436 --> 03:14:09,270
IT MAY BE UNDER SECONDARY

4030
03:14:09,337 --> 03:14:10,538
CONDITIONS IF THAT'S WHAT YOU

4031
03:14:10,605 --> 03:14:12,941
WERE GETTING AT BUT IT COULD

4032
03:14:13,008 --> 03:14:18,013
IMPACT EVEN EARLY INTERVENTION

4033
03:14:18,079 --> 03:14:21,182
SO TRYING TO PROVIDE REHAB

4034
03:14:21,249 --> 03:14:21,416
EARLIER.

4035
03:14:21,483 --> 03:14:26,855
IT MAY BE BETTER RESULTS AND LOW

4036
03:14:26,921 --> 03:14:28,023
HANGING FRUIT WOULD BE

4037
03:14:28,089 --> 03:14:33,294
ADDRESSING COMORBIDITIES AND

4038
03:14:33,361 --> 03:14:34,529
UNDERSTANDING HOW THEY AFFECT.

4039
03:14:34,596 --> 03:14:36,097
>> THANK YOU.

4040
03:14:36,164 --> 03:14:39,267
I DON'T THINK THAT PARTICULAR

4041
03:14:39,334 --> 03:14:43,405
PHRASING CAME UP BUT I SEE THE

4042
03:14:43,471 --> 03:14:53,014
CONNECTING.

4043
03:14:53,081 --> 03:14:55,016
>> MICHELLE, ARE YOU UP AGAIN?

4044
03:14:55,083 --> 03:14:55,717
>> YES.

4045
03:14:55,784 --> 03:14:58,853
I WANT A CLARIFICATION.

4046
03:14:58,920 --> 03:15:01,823
THE LAST RESEARCH PLAN ENDED

4047
03:15:01,890 --> 03:15:04,259
2021 THE ONE CURRENTLY

4048
03:15:04,325 --> 03:15:04,559
PUBLISHED.

4049
03:15:04,626 --> 03:15:09,964
WHEN YOU ARE TRYING TO PUBLISH

4050
03:15:10,031 --> 03:15:10,832
THIS ONE?

4051
03:15:10,899 --> 03:15:13,501
>> WE NEED TO DO A RESEARCH PLAN

4052
03:15:13,568 --> 03:15:15,336
EVERY FIVE YEARS.

4053
03:15:15,403 --> 03:15:17,205
WE DID ONE IN 2016.

4054
03:15:17,272 --> 03:15:22,043
WE DID ANOTHER IN 2021.

4055
03:15:22,110 --> 03:15:23,445
SOME TIME IN 2026 THIS NEEDS TO

4056
03:15:23,511 --> 03:15:28,016
BE PUBLISHED.

4057
03:15:28,083 --> 03:15:30,618
IT TOOK ME ABOUT SEVEN MONTHS

4058
03:15:30,685 --> 03:15:34,422
FROM WHEN I THOUGHT WE WERE DONE

4059
03:15:34,489 --> 03:15:36,157
TO WHERE IT GOT THROUGH THE

4060
03:15:36,224 --> 03:15:38,827
CLEARANCES AND APPROVALS.

4061
03:15:38,893 --> 03:15:40,829
I'M HOPING WE'LL BE DONE IN 18

4062
03:15:40,895 --> 03:15:47,068
MONTHS TO GIVE US TIME TO GET IT

4063
03:15:47,135 --> 03:15:49,537
OUT.

4064
03:15:49,604 --> 03:15:51,339
>> DOES THAT HELP?

4065
03:15:51,406 --> 03:15:52,440
>> THANK YOU FOR THAT.

4066
03:15:52,507 --> 03:15:58,480
I WANT TO ECHO TWO THINGS I

4067
03:15:58,546 --> 03:15:58,880
HEARD.

4068
03:15:58,947 --> 03:16:01,716
THE ISSUE AROUND COMORBIDITIES.

4069
03:16:01,783 --> 03:16:03,151
I'VE BEEN DOING A LOT ON HIV AND

4070
03:16:03,218 --> 03:16:06,688
STROKE AND THINK OF OTHER THINGS

4071
03:16:06,754 --> 03:16:12,393
NOT NORMALLY PAID ATTENTION TO.

4072
03:16:12,460 --> 03:16:15,930
I'D ECHO HOW DOES THAT IMPACT

4073
03:16:15,997 --> 03:16:16,231
RECOVERY.

4074
03:16:16,297 --> 03:16:18,066
IT'S AN IMPORTANT THOUGHT.

4075
03:16:18,133 --> 03:16:18,800
AND THE OTHER THOUGHT ABOUT

4076
03:16:18,867 --> 03:16:24,639
IMPLEMENTATION SCIENCE.

4077
03:16:24,706 --> 03:16:26,741
HOW DOES THAT WORK SPECIFICALLY

4078
03:16:26,808 --> 03:16:28,009
FOR REHAB?

4079
03:16:28,076 --> 03:16:33,148
THERE'S BEEN TALK AROUND IT EVEN

4080
03:16:33,214 --> 03:16:34,883
AMONGST MY COLLEAGUES AND AS A

4081
03:16:34,949 --> 03:16:38,553
TURN DOING REHAB I THINK A FOCUS

4082
03:16:38,620 --> 03:16:41,956
AROUND -- I DON'T KNOW IF IT'S A

4083
03:16:42,023 --> 03:16:43,691
BUZZ WORD THAT'S COME FROM

4084
03:16:43,758 --> 03:16:44,692
TRANSLATIONAL WHICH I STILL

4085
03:16:44,759 --> 03:16:46,394
THINK IS IMPORTANT AND I AGREE

4086
03:16:46,461 --> 03:16:52,500
WITH STEVE WE DON'T DO THAT WELL

4087
03:16:52,567 --> 03:16:56,905
BUT THE IMPLEMENTATION APPLYING

4088
03:16:56,971 --> 03:16:58,306
THE PROCESS OF IMPLEMENTING WHAT

4089
03:16:58,373 --> 03:17:01,042
WE AC NEW JERSEY AS INTERESTING

4090
03:17:01,109 --> 03:17:04,312
OR EFFECTIVE METHODS I THINK IS

4091
03:17:04,379 --> 03:17:09,684
SOMETHING I DON'T KNOW IF WE

4092
03:17:09,751 --> 03:17:15,590
KNOW HOW TO DO WELL AS REHAB

4093
03:17:15,657 --> 03:17:16,691
RESEARCHERS AND NEED SOMETHING

4094
03:17:16,758 --> 03:17:17,258
AROUND THAT'S IMPORTANT TO

4095
03:17:17,325 --> 03:17:21,095
SUPPORT.

4096
03:17:21,162 --> 03:17:31,639
I JUST WANTED TO ECHO THAT.

4097
03:17:36,144 --> 03:17:36,578
LEWIS.

4098
03:17:36,644 --> 03:17:39,414
>> I HAD A TECHNOLOGY BLIP SO

4099
03:17:39,480 --> 03:17:43,685
FOR GIVE ME.

4100
03:17:43,751 --> 03:17:45,954
IT ECHOS WHAT WAS MENTIONED.

4101
03:17:46,020 --> 03:17:48,656
BY THE WAY, I DO LOVE THE

4102
03:17:48,723 --> 03:17:49,791
HIGHLIGHTING THE SOCIAL

4103
03:17:49,857 --> 03:17:51,626
DETERMINATES OF HEALTH AND LOVE

4104
03:17:51,693 --> 03:17:53,695
THE IDEA OF THE COMMUNITY-BASED

4105
03:17:53,761 --> 03:17:55,563
OR COMMUNITY-MINDED APPROACHES

4106
03:17:55,630 --> 03:17:59,634
GETTING OUTSIDE THE LAB.

4107
03:17:59,701 --> 03:18:00,768
ONE OF THE THINGS I'VE BEEN

4108
03:18:00,835 --> 03:18:02,904
INTERESTED IN AND I DON'T KNOW

4109
03:18:02,971 --> 03:18:04,606
IF THIS IS A BIG TENT KIND OF

4110
03:18:04,672 --> 03:18:06,741
THING OR BROAD BASED BUT

4111
03:18:06,808 --> 03:18:12,547
TACKLING THE ISSUE OF

4112
03:18:12,614 --> 03:18:12,914
REPRODUCIBILITY.

4113
03:18:12,981 --> 03:18:14,582
KNOWING WHY INTERVENTIONS WORK

4114
03:18:14,649 --> 03:18:18,553
AND DO THEY WORK IN LIMITED

4115
03:18:18,620 --> 03:18:20,555
POPULATIONS FOR LIMITED REASONS.

4116
03:18:20,622 --> 03:18:26,027
I FEEL IN MY PARTICULAR RESEARCH

4117
03:18:26,094 --> 03:18:28,229
AREA PARTICULARLY NOTABLE

4118
03:18:28,296 --> 03:18:31,099
PUBLICATION HAVE LOW SAMPLE

4119
03:18:31,165 --> 03:18:33,768
SIZES AND ARE DIFFICULT TO

4120
03:18:33,835 --> 03:18:34,769
PRODUCE BECAUSE OF TECHNOLOGY

4121
03:18:34,836 --> 03:18:39,841
AND IP ISSUES.

4122
03:18:39,907 --> 03:18:41,876
THERE'S A LOT OF COMPLEXITY IN

4123
03:18:41,943 --> 03:18:43,978
KNOWING IS THIS A STRONG OR WEAK

4124
03:18:44,045 --> 03:18:47,282
STUDY AND WHAT DO THOSE MEAN.

4125
03:18:47,348 --> 03:18:49,250
I WOULD LOVE TO IF THAT'S NOT

4126
03:18:49,317 --> 03:18:51,419
ALREADY PUT IN THERE SOMEHOW

4127
03:18:51,486 --> 03:18:52,053
WOULD BE A COOL AREA FOR THE

4128
03:18:52,120 --> 03:18:57,625
FUTURE.

4129
03:18:57,692 --> 03:19:01,129
>> THANKS, LEWIS.

4130
03:19:01,195 --> 03:19:07,335
WE MONTH MENTIONED REHAB EARLIE

4131
03:19:07,402 --> 03:19:08,436
WE SHOULD HAVE THEM COME IN

4132
03:19:08,503 --> 03:19:08,703
DECEMBER.

4133
03:19:08,770 --> 03:19:09,504
YOU TELL ME IF YOU WANT THEM OR

4134
03:19:09,570 --> 03:19:19,647
NOT.

4135
03:19:21,115 --> 03:19:22,717
TALK ABOUT WHAT IS AVAILABLE TO

4136
03:19:22,784 --> 03:19:23,518
DO BETTER SCIENCE.

4137
03:19:23,584 --> 03:19:26,354
THAT'S AT THE HEART OF IT.

4138
03:19:26,421 --> 03:19:31,025
I APPRECIATE THAT COMMENT.

4139
03:19:31,092 --> 03:19:35,763
THANK YOU.

4140
03:19:35,830 --> 03:19:36,731
DAWN.

4141
03:19:36,798 --> 03:19:39,167
>> I WANT TO UNDER SCORE THE

4142
03:19:39,233 --> 03:19:39,901
IMPLEMENTATION SCIENCE IT WAS

4143
03:19:39,967 --> 03:19:41,035
SOME IN RESPONSES BUT OTHERS

4144
03:19:41,102 --> 03:19:42,737
HAVE POINT THE IT OUT.

4145
03:19:42,804 --> 03:19:47,842
I WANTED TO FOCUS ON THE

4146
03:19:47,909 --> 03:19:48,076
SYNERGY.

4147
03:19:48,142 --> 03:19:49,010
I SEE SYNERGY BETWEEN

4148
03:19:49,077 --> 03:19:51,279
IMPLEMENTATION SCIENCE AND THE

4149
03:19:51,346 --> 03:19:52,847
INCREASING FOCUS ON INCLUDING

4150
03:19:52,914 --> 03:19:57,118
PEOPLE'S LIVED EXPERIENCES IN

4151
03:19:57,185 --> 03:19:58,653
THE RESEARCH PROCESS.

4152
03:19:58,720 --> 03:20:01,823
AND I THINK MUCH OF GOOD

4153
03:20:01,889 --> 03:20:03,391
IMPLEMENTATION SCIENCE BUILDS

4154
03:20:03,458 --> 03:20:04,926
INTERVENTIONS AND BUILDS THINGS

4155
03:20:04,992 --> 03:20:06,661
TO STUDY BASED ON ENGAGING WITH

4156
03:20:06,728 --> 03:20:08,296
THE PEOPLE WHO ARE GOING TO BE

4157
03:20:08,363 --> 03:20:09,597
SERVED BY IT DOWN THE ROAD.

4158
03:20:09,664 --> 03:20:11,599
NOT JUST THE PEOPLE WITH THE

4159
03:20:11,666 --> 03:20:12,600
LIVED COMMISSION BUT THOSE

4160
03:20:12,667 --> 03:20:15,536
TREATING THOSE PEOPLE WITH THE

4161
03:20:15,603 --> 03:20:16,604
LIVED CONDITION.

4162
03:20:16,671 --> 03:20:19,707
I SEE A NICE SYNERGY AND HOPE

4163
03:20:19,774 --> 03:20:20,341
THAT CONTINUES TO BE SOMETHING

4164
03:20:20,408 --> 03:20:21,109
WE CONSIDER IMPORTANT IN OUR

4165
03:20:21,175 --> 03:20:28,683
FIELD.

4166
03:20:28,750 --> 03:20:30,084
>> I AGREE.

4167
03:20:30,151 --> 03:20:31,953
THANK YOU FOR STATING IT MORE

4168
03:20:32,019 --> 03:20:35,523
ELEGANTLY THAN I STUMBLED ON.

4169
03:20:35,590 --> 03:20:43,164
BOB.

4170
03:20:43,231 --> 03:20:47,869
>> I WANT TO REENFORCE

4171
03:20:47,935 --> 03:20:48,469
IMPLEMENTATION SCIENCE BEING

4172
03:20:48,536 --> 03:20:48,736
IMPORTANT.

4173
03:20:48,803 --> 03:20:51,005
IN TERMS OF REHABILITATION IT'S

4174
03:20:51,072 --> 03:20:51,572
DIFFERENT THAN SOME OTHER

4175
03:20:51,639 --> 03:20:55,276
FIELDS.

4176
03:20:55,343 --> 03:20:56,844
AS I'VE BEEN THINKING ABOUT HOW

4177
03:20:56,911 --> 03:21:02,116
WE GO FROM CLINICAL TRIALS TO

4178
03:21:02,183 --> 03:21:03,684
GETTING INFORMATION WHICH IS

4179
03:21:03,751 --> 03:21:06,554
LASHLGLY WHAT --

4180
03:21:10,725 --> 03:21:13,327
LARGELY CLINICAL TRIALS TAPPING

4181
03:21:13,394 --> 03:21:16,998
INTO BASIC EDUCATION AND

4182
03:21:17,064 --> 03:21:21,602
PROBABLY TO A LARGE DEGREE

4183
03:21:21,669 --> 03:21:24,539
CONTINUING MEDICAL EDUCATION

4184
03:21:24,605 --> 03:21:24,839
SYSTEMS.

4185
03:21:24,906 --> 03:21:26,808
THE ONE THING THAT STRIKE ME

4186
03:21:26,874 --> 03:21:28,142
HAVING BEEN A THERAPIST AND

4187
03:21:28,209 --> 03:21:29,977
INTERACTING WITH THERAPISTS IS

4188
03:21:30,044 --> 03:21:32,346
WHAT THERAPISTS WANT IS THE

4189
03:21:32,413 --> 03:21:34,081
INFORMATION.

4190
03:21:34,148 --> 03:21:36,651
THEY DON'T WANT A COOKBOOK

4191
03:21:36,717 --> 03:21:37,618
PACKAGE APPROACH OR DEVICE TO DO

4192
03:21:37,685 --> 03:21:39,187
THEIR THERAPY FOR THEM.

4193
03:21:39,253 --> 03:21:40,621
I THINK SOMETIMES THAT'S WHAT I

4194
03:21:40,688 --> 03:21:45,326
SEE TRYING TO BE HANDED TO

4195
03:21:45,393 --> 03:21:47,628
THERAPISTS AND THEY WANT TO DO

4196
03:21:47,695 --> 03:21:49,163
THEIR EVALUATIONS AND DESIGN

4197
03:21:49,230 --> 03:21:52,033
THEIR OWN THERAPY IN A WAY THAT

4198
03:21:52,099 --> 03:21:54,969
MEETS THE SPECIFIC PATIENT'S

4199
03:21:55,036 --> 03:21:56,704
NEEDS AND THESE KIND OF

4200
03:21:56,771 --> 03:21:58,272
WHOLESALE PACKAGE APPROACHES I

4201
03:21:58,339 --> 03:21:59,974
THINK ARE NOT GOING TO

4202
03:22:00,041 --> 03:22:00,842
ULTIMATELY WORK OR BE ACCEPTED

4203
03:22:00,908 --> 03:22:11,118
IN THERAPY.

4204
03:22:21,863 --> 03:22:25,566
>> I'LL HAVE TO LOOK AT HOW WE

4205
03:22:25,633 --> 03:22:29,136
ENGAGE WITH SOME PROFESSIONAL

4206
03:22:29,203 --> 03:22:29,937
SOCIETIES THAT DO CMEs.

4207
03:22:30,004 --> 03:22:37,778
VERY IMPORTANT.

4208
03:22:37,845 --> 03:22:39,247
WE DON'T WANT TO CREATE THE

4209
03:22:39,313 --> 03:22:41,115
INFORMATION AND IT STAYS IN PUB

4210
03:22:41,182 --> 03:22:41,282
MED.

4211
03:22:41,349 --> 03:22:43,451
IF IT'S NOT GET IN THE RIGHT

4212
03:22:43,518 --> 03:22:45,052
PEOPLE'S HANDS, WE'RE NOT DOING

4213
03:22:45,119 --> 03:22:46,187
OUR JOB.

4214
03:22:46,254 --> 03:22:47,355
I'LL PIVOT A LITTLE BIT TO SOME

4215
03:22:47,421 --> 03:22:48,189
OTHER QUESTIONS I HAVE ON THE

4216
03:22:48,256 --> 03:22:58,399
SCREEN.

4217
03:23:03,104 --> 03:23:05,139
WE HAVE A LOT OF LATITUDE IN

4218
03:23:05,206 --> 03:23:10,645
WHAT PURPOSE WE WANT IT TO

4219
03:23:10,711 --> 03:23:12,046
SERVE.

4220
03:23:12,113 --> 03:23:14,615
OUR CURRENT PLAN IS BIG TENT.

4221
03:23:14,682 --> 03:23:16,183
I HOPE MOST RESEARCHERS CAN

4222
03:23:16,250 --> 03:23:17,885
IDENTIFY THEMSELVES IN OUR

4223
03:23:17,952 --> 03:23:23,024
RESEARCH PLAN THAT THEY FEEL

4224
03:23:23,090 --> 03:23:27,595
LIKE THEY ARE PART OF THE NIH

4225
03:23:27,662 --> 03:23:29,430
RESEARCH INFRASTRUCTURE.

4226
03:23:29,497 --> 03:23:34,635
WE CAN ALSO DO A PLAN THAT IS

4227
03:23:34,702 --> 03:23:36,837
MORE ABOUT TARGETING STRATEGIC

4228
03:23:36,904 --> 03:23:37,138
PRIORITIES.

4229
03:23:37,204 --> 03:23:39,106
OTHER DIMENSIONS ARE DO WE WANT

4230
03:23:39,173 --> 03:23:40,708
TO BE VERY VISIONARY?

4231
03:23:40,775 --> 03:23:47,081
I THINK WE HEARD A LOT OF

4232
03:23:47,148 --> 03:23:48,215
VISIONARY THINGS AT ARPA-H

4233
03:23:48,282 --> 03:23:49,350
VERSUS PRAGMATIC.

4234
03:23:49,417 --> 03:23:54,855
THAT MAY BE ANOTHER ACCESS WE

4235
03:23:54,922 --> 03:24:02,697
CAN THINK OF WE USE THE DOCUMENT

4236
03:24:02,763 --> 03:24:08,369
TO SHOW OUR SUCCESSES AND TO

4237
03:24:08,436 --> 03:24:11,372
SHOW OUR GROWTH.

4238
03:24:11,439 --> 03:24:13,674
ARE THERE ANY THINGS YOU THINK

4239
03:24:13,741 --> 03:24:16,110
THE FIELD WOULD FIND HELPFUL IN

4240
03:24:16,177 --> 03:24:18,746
THE BACKGROUND AND WHERE HAVE WE

4241
03:24:18,813 --> 03:24:24,585
COME THAT WE SHOULD THINK ABOUT

4242
03:24:24,652 --> 03:24:24,852
INCLUDING?

4243
03:24:24,919 --> 03:24:25,920
I HAD A COUPLE QUESTIONS OUT

4244
03:24:25,987 --> 03:24:28,623
THERE AND HOPEFULLY WE CAN GET

4245
03:24:28,689 --> 03:24:39,100
MORE CONVERSATION GOING.

4246
03:24:44,939 --> 03:24:49,677
THANK YOU, MICHELLE.

4247
03:24:49,744 --> 03:24:58,319
>> IN GENERAL I THINK BIG TENT

4248
03:24:58,386 --> 03:24:59,186
AND STRATEGY PRIORITIES MAY BE

4249
03:24:59,253 --> 03:25:04,125
THE WAY TO GO.

4250
03:25:04,191 --> 03:25:06,694
WITH A LITTLE BIT OF I DON'T

4251
03:25:06,761 --> 03:25:08,696
KNOW IF THESE ARE EXCLUSIVE

4252
03:25:08,763 --> 03:25:10,231
CATEGORIES BUT FEEL WE SHOULD BE

4253
03:25:10,297 --> 03:25:12,099
LEADING THE WAY FORWARD SO THERE

4254
03:25:12,166 --> 03:25:17,238
IS SOMEWHAT OF A LEVEL OF

4255
03:25:17,304 --> 03:25:19,373
VISIONARY MAYBE NOT LIKE YOU

4256
03:25:19,440 --> 03:25:22,309
HAVE TO BE ALWAYS TRANSFORMATIVE

4257
03:25:22,376 --> 03:25:28,349
BUT SOMEWHAT HERE'S A PATH AND

4258
03:25:28,416 --> 03:25:30,317
GENERAL DIRECTION WE WERE GOING

4259
03:25:30,384 --> 03:25:31,852
IN IN TERMS OF AN UMBRELLA.

4260
03:25:31,919 --> 03:25:36,457
THE IDEA OF THE SDGs OR BIG

4261
03:25:36,524 --> 03:25:36,991
PICTURE PATH.

4262
03:25:37,058 --> 03:25:42,129
WE WANT TO BE ABLE TO HAVE

4263
03:25:42,196 --> 03:25:42,830
REHABILITATION FOR ALL.

4264
03:25:42,897 --> 03:25:44,832
THIS THEORY IS IS VISIONARY BUT

4265
03:25:44,899 --> 03:25:50,504
UNDER THAT THERE IS PRACTICAL

4266
03:25:50,571 --> 03:25:52,073
STRATEGIES LIKE WHICH DIRECTION

4267
03:25:52,139 --> 03:25:53,107
ALLOWS US TO GET TO

4268
03:25:53,174 --> 03:25:59,146
REHABILITATION FOR ALL.

4269
03:25:59,213 --> 03:26:00,181
IN GENERAL THAT'S WHAT IT'S

4270
03:26:00,247 --> 03:26:06,353
ABOUT IS REHABILITATION FOR ALL.

4271
03:26:06,420 --> 03:26:12,426
AND ALL BEING ALL SOCIAL

4272
03:26:12,493 --> 03:26:13,461
ECONOMIC BACKGROUNDS TO BE A

4273
03:26:13,527 --> 03:26:19,133
PART OF A GLOBAL MOVEMENT IN

4274
03:26:19,200 --> 03:26:27,041
HEALTH FOR ALL ETCETERA.

4275
03:26:27,108 --> 03:26:30,578
IF THERE'S A VISIONARY THEME BUT

4276
03:26:30,644 --> 03:26:31,645
STILL STRATEGY PRIORITIES THAT

4277
03:26:31,712 --> 03:26:33,114
ALLOW RESEARCHERS TO SEE WHERE

4278
03:26:33,180 --> 03:26:38,919
IN THESE PRIORITIES THEY MAY

4279
03:26:38,986 --> 03:26:41,789
SLOT THEMSELVES IN ORE ACROSS

4280
03:26:41,856 --> 03:26:42,389
PRIORITIES.

4281
03:26:42,456 --> 03:26:47,561
I THINK IF WE STAY STRATEGIC

4282
03:26:47,628 --> 03:26:49,497
VISIONARY AND THEY'RE BASED ON

4283
03:26:49,563 --> 03:26:51,766
GAPS AND OPPORTUNITIES -- I

4284
03:26:51,832 --> 03:26:56,504
DON'T SEE THESE THREE THINGS AS

4285
03:26:56,570 --> 03:26:56,904
SEPARATE THINGS.

4286
03:26:56,971 --> 03:27:01,742
I SEE AS WE SHOULD HAVE A VISION

4287
03:27:01,809 --> 03:27:05,312
WHERE WE OUGHT TO GO WITH REHAB

4288
03:27:05,379 --> 03:27:07,248
LEADING TO STRATEGIC PRIORITIES

4289
03:27:07,314 --> 03:27:08,749
THAT IDENTIFIES GAPS UNDER THE

4290
03:27:08,816 --> 03:27:13,788
STRATEGIC PRIORITIES THAT WOULD

4291
03:27:13,854 --> 03:27:22,396
BE IMPORTANT FOR RESEARCHERS TO

4292
03:27:22,463 --> 03:27:23,364
BE THINKING ABOUT.

4293
03:27:23,430 --> 03:27:24,965
I DON'T THINK THEY SHOULD BE

4294
03:27:25,032 --> 03:27:25,766
SEPARATED PER SE.

4295
03:27:25,833 --> 03:27:31,672
>> YOU TURNED IT ON ITS SIDE.

4296
03:27:31,739 --> 03:27:32,740
THAT'S GREAT.

4297
03:27:32,807 --> 03:27:33,874
THAT'S WHY WE HAVE THE

4298
03:27:33,941 --> 03:27:34,475
CONVERSATION.

4299
03:27:34,542 --> 03:27:36,043
I WAS STRUCK BY YOUR STATEMENT

4300
03:27:36,110 --> 03:27:39,280
OF REHAB FOR ALL AND NOW I NEED

4301
03:27:39,346 --> 03:27:42,016
TO GOOGLE AND SEE IF SOMEONE'S

4302
03:27:42,082 --> 03:27:43,717
TAGLINED THAT BECAUSE WE'RE

4303
03:27:43,784 --> 03:27:46,253
GOING NEED A TITLE FOR THE

4304
03:27:46,320 --> 03:27:46,554
CONFERENCE.

4305
03:27:46,620 --> 03:27:51,258
WE'LL NEED SOMETHING TO GET

4306
03:27:51,325 --> 03:27:54,495
AROUND AND THAT STRUCK ME SO

4307
03:27:54,562 --> 03:27:56,163
I'LL MAKE SURE IT'S NOT

4308
03:27:56,230 --> 03:28:06,674
COPYRIGHTED OR SOMETHING.

4309
03:28:09,243 --> 03:28:09,310
OKAY.

4310
03:28:09,376 --> 03:28:11,011
ANY OTHER COMMENTS?

4311
03:28:11,078 --> 03:28:11,946
WE'LL HAVE MORE OPPORTUNITIES.

4312
03:28:12,012 --> 03:28:21,922
LET'S GO TO THE NEXT SLIDE.

4313
03:28:21,989 --> 03:28:24,925
NIH STAFF ARE GOING TO WORK

4314
03:28:24,992 --> 03:28:28,062
THROUGH FEEDBACK FROM YOU ALL.

4315
03:28:28,128 --> 03:28:30,931
WHAT WE KNOW ABOUT WHAT

4316
03:28:30,998 --> 03:28:37,137
APPLICATIONS COME IN AND OUR

4317
03:28:37,204 --> 03:28:39,373
EXPERTISE AND THE RESPONSE FROM

4318
03:28:39,440 --> 03:28:42,610
THE R FIF AND PUT TOGETHER OUR

4319
03:28:42,676 --> 03:28:45,179
DRAFT AND I'M TARGETING AUGUST

4320
03:28:45,246 --> 03:28:45,846
OR SEPTEMBER.

4321
03:28:45,913 --> 03:28:49,116
IT DEPENDS ON HOW BUSY THE

4322
03:28:49,183 --> 03:28:55,789
SUMMER IS.

4323
03:28:55,856 --> 03:28:58,492
WE ALREADY SOLICITED PEOPLE THAT

4324
03:28:58,559 --> 03:29:01,795
CAN BE PART OF A WORKING GROUP

4325
03:29:01,862 --> 03:29:03,330
AND GIVE US FEEDBACK BEFORE WE

4326
03:29:03,397 --> 03:29:08,669
BRING IT BACK IN DECEMBER.

4327
03:29:08,736 --> 03:29:12,873
I HAVE TWO NAMES.

4328
03:29:12,940 --> 03:29:14,408
IF MY DOCUMENTATION ISN'T

4329
03:29:14,475 --> 03:29:15,910
CORRECT FEEL FREE TO SAY YOU

4330
03:29:15,976 --> 03:29:23,083
DIDN'T VOL UNE  -- VOLUNTEER AND

4331
03:29:23,150 --> 03:29:23,984
WE'RE INTERESTED IN PEOPLE WHO

4332
03:29:24,051 --> 03:29:27,087
WANT TO WORK WITH THE NIH TEAM.

4333
03:29:27,154 --> 03:29:34,061
GET FEEDBACK IN THE FALL.

4334
03:29:34,128 --> 03:29:36,363
AT OUR DECEMBER MEETING WE WILL

4335
03:29:36,430 --> 03:29:38,332
HAVE A MORE REPORT OUT AND

4336
03:29:38,399 --> 03:29:38,899
ANOTHER OPPORTUNITY TO GET

4337
03:29:38,966 --> 03:29:43,971
FEEDBACK.

4338
03:29:44,038 --> 03:29:48,475
I AM ENGAGING IN LISTENING

4339
03:29:48,542 --> 03:29:49,710
SESSION TO GET FEEDBACK FROM THE

4340
03:29:49,777 --> 03:29:52,680
COMMUNITY.

4341
03:29:52,746 --> 03:29:53,614
SO THOSE ARE THE IMMEDIATE NEXT

4342
03:29:53,681 --> 03:30:03,357
STEPS.

4343
03:30:03,424 --> 03:30:07,895
I WANTED TO GIVE YOU MORE RETAIL

4344
03:30:07,962 --> 03:30:11,865
ABOUT THE REHAB CONFERENCE.

4345
03:30:11,932 --> 03:30:15,703
SO WE DO HAVE THE NIH CONFERENCE

4346
03:30:15,769 --> 03:30:18,272
CENTER AT NATCHER BOOKED.

4347
03:30:18,339 --> 03:30:23,444
WE ARE GOING HAVE A HYBRID

4348
03:30:23,510 --> 03:30:25,813
OPTION SO DEPENDING ON HOW WE DO

4349
03:30:25,879 --> 03:30:32,353
THE AGENDA, PARTS OR ALL OF THE

4350
03:30:32,419 --> 03:30:33,754
IN PERSON WILL BE VIDEO CAST BUT

4351
03:30:33,821 --> 03:30:36,657
WE STILL HAVEN'T SETTLED ON

4352
03:30:36,724 --> 03:30:38,659
WHETHER WE'LL HAVE MULTIPLE

4353
03:30:38,726 --> 03:30:41,328
TRACKS WHICH MAY MAKE THE

4354
03:30:41,395 --> 03:30:41,962
VIDEOCAST MORE DIFFICULT IF WE

4355
03:30:42,029 --> 03:30:47,167
DECIDE TO HAVE THAT.

4356
03:30:47,234 --> 03:30:48,569
THE MULTIPLE-TRACK OPTION.

4357
03:30:48,635 --> 03:30:53,140
THERE'S AN IN-PERSON LIMIT IN

4358
03:30:53,207 --> 03:30:54,308
OUR MAIN AUDITORIUM OF 500

4359
03:30:54,375 --> 03:30:57,945
PEOPLE.

4360
03:30:58,012 --> 03:31:03,083
FOR REFERENCE, THE 2016

4361
03:31:03,150 --> 03:31:05,919
CONFERENCE WE HAD ABOUT 500

4362
03:31:05,986 --> 03:31:07,254
PEOPLE REGISTERED AND ABOUT 350

4363
03:31:07,321 --> 03:31:08,922
SHOWED UP.

4364
03:31:08,989 --> 03:31:17,297
SO THAT WAS PRE-COVID.

4365
03:31:17,364 --> 03:31:21,135
THERE IS IS THAT LIMITATION ON

4366
03:31:21,201 --> 03:31:23,270
THE IN-PERSON.

4367
03:31:23,337 --> 03:31:33,781
THE VIDEO CAST IS UNLIMITED.

4368
03:31:33,847 --> 03:31:35,382
SO WE ARE ALSO STARTING TO WORK

4369
03:31:35,449 --> 03:31:37,918
ON THAT IN PERSONALLY AT NIH.

4370
03:31:37,985 --> 03:31:41,522
WE HAVE A HANDFUL OF PROGRAM

4371
03:31:41,588 --> 03:31:43,791
DIRECTORS FROM INSTITUTES

4372
03:31:43,857 --> 03:31:46,460
WORKING WITH NCMRR.

4373
03:31:46,527 --> 03:31:52,132
WE ARE HAPPY TO HAVE THEIR

4374
03:31:52,199 --> 03:31:57,571
COLLABORATION BUT IF YOU HAVE

4375
03:31:57,638 --> 03:32:01,108
SUGGESTIONS ON THE AGENDA ANY OF

4376
03:32:01,175 --> 03:32:07,514
THOSE THINGS WE WELCOME THEM WE

4377
03:32:07,581 --> 03:32:09,249
HAD A HANDFUL OF PEOPLE TO BE

4378
03:32:09,316 --> 03:32:10,884
PART OF AN EXTERNAL WORKING

4379
03:32:10,951 --> 03:32:12,219
GROUP AND WE'RE GOING TO ENGAGE

4380
03:32:12,286 --> 03:32:17,591
WITH THEM OVER THE SUMMER.

4381
03:32:17,658 --> 03:32:20,160
SAME DISCLAIMER.

4382
03:32:20,227 --> 03:32:23,130
IF I PUT YOUR NAME ON THE WRONG

4383
03:32:23,197 --> 03:32:24,364
LIST, THAT'S MY FAULT OR

4384
03:32:24,431 --> 03:32:25,466
OBLIGATION HAVE CHANGED AND

4385
03:32:25,532 --> 03:32:26,867
YOU'RE NO LONGER AVAILABLE WE

4386
03:32:26,934 --> 03:32:27,568
ALSO UNDERSTAND.

4387
03:32:27,634 --> 03:32:34,541
THEN WE HOPE THAT GROUP WILL

4388
03:32:34,608 --> 03:32:37,544
REPORT OUT IN DECEMBER TO GET

4389
03:32:37,611 --> 03:32:38,545
EVERYBODY HYPED FOR THE MEETING

4390
03:32:38,612 --> 03:32:39,179
IN MARCH.

4391
03:32:39,246 --> 03:32:42,516
I THINK WE'RE AT TIME BUT

4392
03:32:42,583 --> 03:32:44,785
WELCOME QUESTIONS, FEEDBACK

4393
03:32:44,852 --> 03:32:55,229
THOUGHTS ON THIS PLAN.

4394
03:33:01,668 --> 03:33:02,970
>> I HAVE NO DOUBT WE WILL ALL

4395
03:33:03,036 --> 03:33:12,045
BE SENDING YOU MESSAGES AS WE GO

4396
03:33:12,112 --> 03:33:12,246
ALONG.

4397
03:33:12,312 --> 03:33:14,481
THANK YOU VERY MUCH FOR THAT.

4398
03:33:14,548 --> 03:33:15,215
LOTS OF GREAT POSSIBILITIES TO

4399
03:33:15,282 --> 03:33:21,288
THINK ABOUT.

4400
03:33:21,355 --> 03:33:24,725
BEFORE WE MOVE FORWARD, THANK

4401
03:33:24,791 --> 03:33:26,727
YOU, THERESA AND RALPH FOR ALL

4402
03:33:26,793 --> 03:33:28,562
YOU'VE DONE TO PUT THIS TOGETHER

4403
03:33:28,629 --> 03:33:31,298
AND HAVE IT BE A WONDERFUL DAY

4404
03:33:31,365 --> 03:33:34,368
AND TO EACH OF YOU ON THE SCREEN

4405
03:33:34,434 --> 03:33:40,307
FOR YOUR ACTIVE PARTICIPATION.

4406
03:33:40,374 --> 03:33:42,342
IT'S NOT ALWAYS EASY TO DO IN A

4407
03:33:42,409 --> 03:33:43,810
ZOOM FORMAT AND I THINK WE'VE

4408
03:33:43,877 --> 03:33:46,647
HAD GREAT DISCUSSIONS, GREAT

4409
03:33:46,713 --> 03:33:47,748
PRESENTATIONS AND DELIGHTED WITH

4410
03:33:47,814 --> 03:33:53,921
THAT.

4411
03:33:53,987 --> 03:33:57,724
ADD MY THANKS TO RALPH'S EARLIER

4412
03:33:57,791 --> 03:33:58,859
COMMENTS ABOUT THE TREMENDOUS

4413
03:33:58,926 --> 03:34:01,128
ASL INTERPRETERS THAT HAVE BEEN

4414
03:34:01,195 --> 03:34:04,631
GOING NON STOP AND TO THE

4415
03:34:04,698 --> 03:34:05,165
INCREDIBLE SUPPORT AND

4416
03:34:05,232 --> 03:34:07,534
INFRASTRUCTURE FOR THE TEAM THAT

4417
03:34:07,601 --> 03:34:10,070
HAS MADE THIS ZOOM MEETING GO SO

4418
03:34:10,137 --> 03:34:13,106
SMOOTHLY FOR ALL OF US.

4419
03:34:13,173 --> 03:34:17,110
I AM IN AWE AND I THINK YOU ARE

4420
03:34:17,177 --> 03:34:21,882
ABSOLUTELY FABULOUS.

4421
03:34:21,949 --> 03:34:24,918
AT THIS POINT, I WOULD LIKE TO

4422
03:34:24,985 --> 03:34:30,123
HAVE THE BITTER SWEET

4423
03:34:30,190 --> 03:34:40,767
OPPORTUNITY TO ASK CHERI AND

4424
03:34:40,834 --> 03:34:42,502
FLORA AND WADE FOR THEIR

4425
03:34:42,569 --> 03:34:44,238
COMMENTS AND THANK YOU EACH OF

4426
03:34:44,304 --> 03:34:45,439
YOU FOR YOUR CONTRIBUTIONS OR

4427
03:34:45,505 --> 03:34:56,049
YOUR SERVICE ON THIS COMMITTEE.

4428
03:35:12,666 --> 03:35:13,333
>> I APPRECIATE THE OPPORTUNITY

4429
03:35:13,400 --> 03:35:16,203
AND HONOR TO BE ON THE BOARD.

4430
03:35:16,270 --> 03:35:18,672
IT WILL BE USEFUL FOR ME AS A

4431
03:35:18,739 --> 03:35:23,744
RESEARCHER AND DEPARTMENT CHAIR.

4432
03:35:23,810 --> 03:35:25,078
I SURE HOPE I'VE BEEN ABLE TO

4433
03:35:25,145 --> 03:35:27,581
GIVE BACK TO THE BOARD AND I

4434
03:35:27,648 --> 03:35:28,715
LEAVE INCREDIBLY INSPIRED BY THE

4435
03:35:28,782 --> 03:35:34,154
COLLEAGUES I'VE GOTTEN TO MEET

4436
03:35:34,221 --> 03:35:35,722
WHO ARE ON THE BOARD AS WELL AS

4437
03:35:35,789 --> 03:35:36,723
RALPH AND THERESA THEMSELVES.

4438
03:35:36,790 --> 03:35:46,466
THANK YOU SO MUCH.

4439
03:35:46,533 --> 03:35:56,777
>> THANK YOU.

4440
03:35:58,712 --> 03:35:59,012
>> CHERI.

4441
03:35:59,079 --> 03:36:02,282
>> THANK YOU, BARBARA.

4442
03:36:02,349 --> 03:36:03,617
THANK YOU, EVERYONE FOR THE

4443
03:36:03,684 --> 03:36:04,451
OPPORTUNITY OVER THE LAST

4444
03:36:04,518 --> 03:36:05,419
SEVERAL YEARS.

4445
03:36:05,485 --> 03:36:08,155
I WANTED TO GIVE A PLUS ONE TO A

4446
03:36:08,221 --> 03:36:12,959
COMMENT WE MADE EARLIER WHICH IS

4447
03:36:13,026 --> 03:36:15,395
THAT I HAVE FELT I LEARNED AND

4448
03:36:15,462 --> 03:36:18,365
GAINED MORE THAN I GAVE EASILY.

4449
03:36:18,432 --> 03:36:21,635
I FEEL LIKE I LEFT EVERY MEETING

4450
03:36:21,702 --> 03:36:24,037
A LITTLE BIT MATTER AND MORE

4451
03:36:24,104 --> 03:36:29,209
INFORMED AND INSPIRED BY THE

4452
03:36:29,276 --> 03:36:30,744
KNOWLEDGE AND DEPTH OF

4453
03:36:30,811 --> 03:36:33,046
EXPERIENCE AND COMMITMENT TO

4454
03:36:33,113 --> 03:36:34,214
REHAB SHOWN ACROSS THE ENTIRETY

4455
03:36:34,281 --> 03:36:34,881
OF THE BOARD.

4456
03:36:34,948 --> 03:36:37,117
IT'S BEEN AN HONOR TO BE

4457
03:36:37,184 --> 03:36:39,019
INVOLVED IN THIS CRITICALLY

4458
03:36:39,086 --> 03:36:40,620
IMPORTANT PROCESS OF ADVISING ON

4459
03:36:40,687 --> 03:36:42,856
THE DEVELOPMENT OF RESEARCH

4460
03:36:42,923 --> 03:36:45,992
PRIORI

4461
03:36:46,059 --> 03:36:49,129
PRIORITIES THAT IMPACT SO MANY

4462
03:36:49,196 --> 03:36:50,397
AMERICANS WITH DISABILITIES AND

4463
03:36:50,464 --> 03:36:52,199
WONDERFUL TO SEE THE PROGRESS

4464
03:36:52,265 --> 03:36:53,266
OVER THE LAST SEVERAL YEARS AS

4465
03:36:53,333 --> 03:36:55,669
IT GOES TO CONCEPTS OF ABLISM

4466
03:36:55,736 --> 03:36:58,438
AND ENSURING AN ANTI-ABLIVELY

4467
03:36:58,505 --> 03:37:01,108
APPROACH TO OUR RESEARCH

4468
03:37:01,174 --> 03:37:02,909
SUPPORTED THROUGH THE NIH AND

4469
03:37:02,976 --> 03:37:04,044
SIGNIFICANT MILESTONES LIKE THE

4470
03:37:04,111 --> 03:37:05,479
DESIGNATION OF PEOPLE WITH

4471
03:37:05,545 --> 03:37:06,913
DISABILITIES AS A HEALTH

4472
03:37:06,980 --> 03:37:09,282
DISPARITIES POPULATION IN 2023.

4473
03:37:09,349 --> 03:37:11,418
AND THOSE TYPES OF CHANGES AND

4474
03:37:11,485 --> 03:37:13,120
PROGRESS IS GOING HAVE A HUGE

4475
03:37:13,186 --> 03:37:18,091
IMPACT IN THE FUTURE.

4476
03:37:18,158 --> 03:37:21,695
IT'S BEEN A REAL HONOR AND

4477
03:37:21,762 --> 03:37:22,963
SPECIFICALLY THANK THERESA AND

4478
03:37:23,029 --> 03:37:26,933
RALPH FOR YOUR PARTNERSHIP AND

4479
03:37:27,000 --> 03:37:27,267
COLLABORATION.

4480
03:37:27,334 --> 03:37:27,801
THANK YOU, EVERYONE.

4481
03:37:27,868 --> 03:37:28,168
I APPRECIATE IT.

4482
03:37:28,235 --> 03:37:35,742
>> THANK YOU.

4483
03:37:35,809 --> 03:37:35,942
WADE.

4484
03:37:36,009 --> 03:37:37,844
>> THERE'S NOT MUCH ELSE TO SAY.

4485
03:37:37,911 --> 03:37:38,879
THANK YOU FOR BEING OUR CHAIR

4486
03:37:38,945 --> 03:37:40,447
THE LAST TIME AROUND.

4487
03:37:40,514 --> 03:37:44,584
I WANT TO THANK RALPH AND

4488
03:37:44,651 --> 03:37:46,386
THERESA FOR THEIR AMAZING

4489
03:37:46,453 --> 03:37:46,686
LEADERSHIP.

4490
03:37:46,753 --> 03:37:51,525
IT'S TRULY BEEN AN HONOR.

4491
03:37:51,591 --> 03:37:53,360
I'VE LEARNED SO MUCH AND MADE

4492
03:37:53,427 --> 03:37:54,928
CONNECTIONS AND LEARNED ABOUT

4493
03:37:54,995 --> 03:37:55,095
NIH.

4494
03:37:55,162 --> 03:38:01,001
I FEEL HONORED AND PRIVILEGED TO

4495
03:38:01,067 --> 03:38:03,770
HAVE SOME SMALL INPUT INTO OUR

4496
03:38:03,837 --> 03:38:06,873
RESEARCH PRIORITIES AND

4497
03:38:06,940 --> 03:38:07,207
TRAJECTORIES.

4498
03:38:07,274 --> 03:38:11,044
IT'S HELPED ME GROW

4499
03:38:11,111 --> 03:38:15,115
ORGANIZATIONS LIKE MINE AND IT'S

4500
03:38:15,182 --> 03:38:17,117
BEEN ONE OF THE HIGHLIGHTS OF MY

4501
03:38:17,184 --> 03:38:19,386
CAREER AND THANK YOU FROM THE

4502
03:38:19,453 --> 03:38:23,223
BOTTOM OF MY HEART.

4503
03:38:23,290 --> 03:38:24,090
THANK YOU.

4504
03:38:24,157 --> 03:38:25,125
>> THANK YOU.

4505
03:38:25,192 --> 03:38:26,793
BEFORE WE LET EVERYBODY GO BACK

4506
03:38:26,860 --> 03:38:28,662
WE'D LIKE TO GET YOUR INPUT ON

4507
03:38:28,728 --> 03:38:32,499
POTENTIAL TOPICS YOU WOULD LIKE

4508
03:38:32,566 --> 03:38:33,099
US TO INCLUDE IN THE DECEMBER

4509
03:38:33,166 --> 03:38:41,041
MEETING.

4510
03:38:41,107 --> 03:38:42,375
WOE HEARD A COUPLE SUGGESTIONS.

4511
03:38:42,442 --> 03:38:48,281
THE READOUTS FROM THE WORKING

4512
03:38:48,348 --> 03:38:50,517
GROUPS.

4513
03:38:50,584 --> 03:38:52,986
THE REHAB PRESENTATION AND WHAT

4514
03:38:53,053 --> 03:38:56,223
OTHER THINGS WOULD YOU LIKE US

4515
03:38:56,289 --> 03:38:58,124
TO BRING TO IT?

4516
03:38:58,191 --> 03:38:58,725
IMPLEMENTATION SCIENCE WE'RE

4517
03:38:58,792 --> 03:39:03,196
SEEING.

4518
03:39:03,263 --> 03:39:04,498
MUSHL, THANK YOU.

4519
03:39:04,564 --> 03:39:04,664
--

4520
03:39:07,300 --> 03:39:07,601
MICHELLE, THANK YOU.

4521
03:39:07,667 --> 03:39:13,106
>> I'M ALSO GOING TO PUT ON

4522
03:39:13,173 --> 03:39:16,142
BLAST THAT NEXT YEAR WE HAVE SIX

4523
03:39:16,209 --> 03:39:16,710
MEMBERS RETIRING.

4524
03:39:16,776 --> 03:39:18,411
THIS YEAR WE HAD THREE.

4525
03:39:18,478 --> 03:39:19,713
NEXT YEAR WE'LL HAVE SIX.

4526
03:39:19,779 --> 03:39:24,885
THAT MEANS WE HAVE SIX

4527
03:39:24,951 --> 03:39:30,891
OPPORTUNITIES TO HEAR SCIENTIFIC

4528
03:39:30,957 --> 03:39:36,062
PRESENTATIONS FROM YOU ALL.

4529
03:39:36,129 --> 03:39:38,698
AND I CAN'T SEE WHY WE WOULDN'T

4530
03:39:38,765 --> 03:39:41,635
BUT WE'LL BE IN PERSON AND HAVE

4531
03:39:41,701 --> 03:39:42,469
THE FULL DAY AND A HALF.

4532
03:39:42,536 --> 03:39:45,906
WE HAVE MORE TIME TO WORK WITH

4533
03:39:45,972 --> 03:39:50,977
SO IF YOU'RE CYCLING OFF IN

4534
03:39:51,044 --> 03:39:53,713
2025, THIS IS YOUR NOTICE WE'RE

4535
03:39:53,780 --> 03:39:57,117
GOING TO COME ASK YOU TO PRESENT

4536
03:39:57,183 --> 03:40:07,594
ON YOUR EXCELLENT WORK.

4537
03:40:08,328 --> 03:40:09,195
>> SEVERAL COMMENTS ARE COMING

4538
03:40:09,262 --> 03:40:11,431
UP IN THE CHAT.

4539
03:40:11,498 --> 03:40:12,599
UPDATE ON THE IMPLEMENTATION OF

4540
03:40:12,666 --> 03:40:18,438
THE CHANGING REVIEW CRITERIA.

4541
03:40:18,505 --> 03:40:23,009
A.I. IN REHAB.

4542
03:40:23,076 --> 03:40:26,112
RESEARCH TO WORK RESEARCH.

4543
03:40:26,179 --> 03:40:36,323
STEVE.

4544
03:40:44,130 --> 03:40:45,432
KATHY, CENTRALIZED TRIALS IN

4545
03:40:45,498 --> 03:40:46,266
REHAB.

4546
03:40:46,333 --> 03:40:46,600
FRANCISCO.

4547
03:40:46,666 --> 03:40:50,136
>> YEAH, I JUST WANTED TO

4548
03:40:50,203 --> 03:40:54,307
MENTION THE IDEA OF A.I. IN

4549
03:40:54,374 --> 03:40:55,709
REHAB AND LARGE LANGUAGE MODELS

4550
03:40:55,775 --> 03:40:57,110
AND THEIR APPLICATIONS.

4551
03:40:57,177 --> 03:41:02,115
THIS IS A VERY FAST MOVING AREA

4552
03:41:02,182 --> 03:41:04,818
THAT I AM SURE YOU CAN HAVE A

4553
03:41:04,884 --> 03:41:10,323
WAY TO HELP US AND OTHERS

4554
03:41:10,390 --> 03:41:20,567
UNDERS

4555
03:41:21,234 --> 03:41:25,005
UNDERSTAND.

4556
03:41:25,071 --> 03:41:26,439
>> I THINK WE HAVE PLENTY TO

4557
03:41:26,506 --> 03:41:29,542
WORK WITH.

4558
03:41:29,609 --> 03:41:32,112
>> WE HAVE A VERY FULL PANEL OF

4559
03:41:32,178 --> 03:41:34,714
SUGGESTIONS AND I'M VERY

4560
03:41:34,781 --> 03:41:34,981
GRATEFUL.

4561
03:41:35,048 --> 03:41:36,383
ANY CLOSING REMARKS, THERESA,

4562
03:41:36,449 --> 03:41:39,619
RALPH?

4563
03:41:39,686 --> 03:41:42,055
>> JUST A HUGE HUGE THANK YOU TO

4564
03:41:42,122 --> 03:41:46,593
ALL OF YOU FOR ENGAGING WITH US.

4565
03:41:46,660 --> 03:41:48,895
TO BARBARA FOR LEADING THE

4566
03:41:48,962 --> 03:41:55,201
CONVERSATIONS AND MODERATING THE

4567
03:41:55,268 --> 03:41:55,502
DISCUSSIONS.

4568
03:41:55,568 --> 03:41:56,102
NONE OF THIS HAPPENS WITHOUT

4569
03:41:56,169 --> 03:42:00,407
RALPH.

4570
03:42:00,473 --> 03:42:03,276
I THANK HIM IMMENSELY FOR ALL

4571
03:42:03,343 --> 03:42:04,844
THE COORDINATION HE DOES BEHIND

4572
03:42:04,911 --> 03:42:05,812
THE SCENES MONTHS AHEAD OF TIME

4573
03:42:05,879 --> 03:42:07,113
TO GET US HERE.

4574
03:42:07,180 --> 03:42:09,215
WE'VE HAD OUR WONDERFUL

4575
03:42:09,282 --> 03:42:09,649
INTERPRETERS.

4576
03:42:09,716 --> 03:42:15,155
WE HAVE ALSO HAD A SLEW OF

4577
03:42:15,221 --> 03:42:17,123
PEOPLE MAKING SURE THE ZOOM

4578
03:42:17,190 --> 03:42:18,458
WORKED AND THE SLIDES ARE SHARED

4579
03:42:18,525 --> 03:42:22,429
AND NIH VIDEOCAST WERE ALL

4580
03:42:22,495 --> 03:42:24,297
HAPPENING AND A HUGE THANKS TO

4581
03:42:24,364 --> 03:42:26,299
THE I.T. SUPPORT THAT GOES INTO

4582
03:42:26,366 --> 03:42:29,002
THESE MEETINGS.

4583
03:42:29,069 --> 03:42:31,438
AND THEN ALSO WE HAVE A NEW

4584
03:42:31,504 --> 03:42:32,472
OFFICE OF COMMUNITY MANAGEMENT

4585
03:42:32,539 --> 03:42:32,939
SET UP.

4586
03:42:33,006 --> 03:42:35,809
I WANT TO THANK THE PEOPLE WHO

4587
03:42:35,875 --> 03:42:38,945
MAKE SURE ALL OF YOUR PAPERWORK

4588
03:42:39,012 --> 03:42:41,114
IS DONE AND COOP US ON THE

4589
03:42:41,181 --> 03:42:46,052
STRAIGHT AND NARROW WITH THAT.

4590
03:42:46,119 --> 03:42:49,222
A BIG THANKS TO THOSE STAFF AT

4591
03:42:49,289 --> 03:42:49,723
NIH AS WELL.

4592
03:42:49,789 --> 03:42:50,390
RALPH, DID YOU WANT TO ADD

4593
03:42:50,457 --> 03:42:56,563
ANYTHING?

4594
03:42:56,629 --> 03:42:57,731
>> I JUST WANT TO THANK THE

4595
03:42:57,797 --> 03:43:01,067
BROADER AUDIENCE WE HAVE.

4596
03:43:01,134 --> 03:43:03,269
BOTH THE IMMEDIATE BOARD YOU

4597
03:43:03,336 --> 03:43:04,971
NETWORK WITH AND THE LARGER

4598
03:43:05,038 --> 03:43:06,673
AUDIENCE WHO WATCHES OUR

4599
03:43:06,740 --> 03:43:06,940
MEETINGS.

4600
03:43:07,006 --> 03:43:08,842
I HOPE WE'RE STAYING RELEVANT

4601
03:43:08,908 --> 03:43:10,944
AND HITTING ON SOME ISSUES THAT

4602
03:43:11,010 --> 03:43:12,679
REALLY MATTER TO SUPPORTING

4603
03:43:12,746 --> 03:43:13,813
PEOPLE WITH DISABILITIES,

4604
03:43:13,880 --> 03:43:16,783
SUPPORTING FAMILIES, SUPPORTING

4605
03:43:16,850 --> 03:43:17,317
REHAB RESEARCH.

4606
03:43:17,383 --> 03:43:23,056
WE ARE TRYING TO MAKE SURE THAT

4607
03:43:23,123 --> 03:43:27,127
WE'RE CONNECTING TO ISSUES THAT

4608
03:43:27,193 --> 03:43:28,995
MATTER AND HAVING THESE BOARD

4609
03:43:29,062 --> 03:43:32,999
MEETINGS KEEPS IT GOING.

4610
03:43:33,066 --> 03:43:34,834
COLLEAGUES, WE'RE ALWAYS WELCOME

4611
03:43:34,901 --> 03:43:38,705
TO HAVE INPUT AND WELCOME

4612
03:43:38,772 --> 03:43:40,240
COMMUNICATION AND NOT JUST THE

4613
03:43:40,306 --> 03:43:41,641
BOARD MEETINGS BUT ANY TIME

4614
03:43:41,708 --> 03:43:43,209
BEYOND THAT IS OUR JOB.

4615
03:43:43,276 --> 03:43:46,613
WE'RE PAID FROM YOUR TAX DOLLARS

4616
03:43:46,679 --> 03:43:49,115
BUT THE TWO DAYS HAVE BEEN

4617
03:43:49,182 --> 03:43:49,315
GREAT.

4618
03:43:49,382 --> 03:43:51,184
A LOT OF GREAT ENERGY.

4619
03:43:51,251 --> 03:43:53,052
I'M SORRY IT'S BEEN VIRTUAL BUT

4620
03:43:53,119 --> 03:43:55,188
YOU FOLKS HAVE BEEN CONNECTED SO

4621
03:43:55,255 --> 03:43:56,756
WE APPRECIATE THAT AND LOOK

4622
03:43:56,823 --> 03:43:58,424
FORWARD TO OUR MEETING.

4623
03:43:58,491 --> 03:44:00,426
AS YOU KNOW WE ALWAYS MEET THE

4624
03:44:00,493 --> 03:44:02,162
FIRST MONDAY AND TUESDAY OF

4625
03:44:02,228 --> 03:44:04,831
DECEMBER AND IN MAY.

4626
03:44:04,898 --> 03:44:05,665
THANKS AGAIN.

4627
03:44:05,732
I GUESS WE'RE CLOSED.