>> HELLO, WELCOME TO DAY 2 OF
THE NATIONAL ADVISORY BOARD
COMING FROM NATIONAL INSTITUTES
OF HEALTH AND FOR CHILD
DEVELOPMENT AND MEDICAL HEALTH
AND RESEARCH. YESTERDAY'S
DISCUSSION WILL BE AVAILABLE ON
THE NIH VIDEOCAST FOR ARCHIVE
VIEWING AND TODAY'S SESSION IS
AVAILABLE AFTERWARDS. WE
APPRECIATE EVERYONE TUNING IN.
TURNING IT TO ERIC TO RUN THE
MEETING AND GET US STARTED.
>> GOOD MORNING, WELCOME BACK.
GIVING ONE OF THE ADVISORY
MEMBERS NOT ABLE TO BE HERE AT
THE BEGINNING YESTERDAY A CHANCE
TO INTRODUCE HERSELF. WE HAVE
FLORA HAMMOND.
>> YES. THANK YOU FLORA
HAMMOND.
>> EXCELLENT AND WE HAVE AN EXO
FISH YO [INDISCERNIBLE].
>> [INDISCERNIBLE].
>> THANKS.
>> THE FIRST SESSION TODAY IS
GOING TO BE FOCUSED ON KNOWLEDGE
TRANSLATION THAT IS A TOPIC THE
ADVISORY BOARD WAS VERY
INTERESTED IN LAST TIME WE MET
AND WORKED HARD TO PUT TOGETHER
A SESSION I WILL ALL ENJOY AND
TURNING IT TO RALPH TO INTRODUCE
THE SPEAKERS.
>> I WANT TO THANK TLOOET
SPEAKERS FOR THIS THAT ENGAGED
THE TOPIC AND PREPARED EXCELLENT
MATERIAL AND AS NMCRR WAS
THINKING OF KNOWLEDGE
TRANSLATION, WE FOCUS ON
RESEARCHERS AND HOW THEY HAVE TO
MAKE THEIR RESEARCH THINK ABOUT
THE ENDPOINT OF THEIR RESEARCH
AND REAL WORLD AND VALIDITY AND
SCALABILITY AND SO ON.
IT IS ALSO DEPENDENT ON
CONSUMERS, CLINICIANS AND
FAMILIES AND HOW THEY TAKE ON
RESEARCH AND UNDERSTAND GOALS
AND HOW THE TWO MEET TOGETHER TO
REALLY HAVE HONORABLE
DISCUSSIONS AND WE ARE FORTUNATE
TO HAVE THREE PEOPLE THAT KNOW
THIS TOPIC WELL AND HAVE A LOT
OF CONNECTIONS TO SEVERAL
GOVERNMENT RESEARCH FUNDERS AND
I APPRECIATE THE EFFORTS THAT
YOU CAN HEAR EXCITING STUFF AND
I INTRODUCE ALL THREE AND LET
THEM TAKE OFF WITH IT AND
PROVIDE COMMENTS AND WE WILL
HAVE SUFFICIENT TIME AT THE END
FOR DISCUSSION. FIRST, WE HAVE
LINDA RESNIK, A PROFESSOR OF
HEALTH SCIENCES, POLICY AND
PRACTICE AT BROWN UNIVERSITY AND
RESEARCH SCIENTIST WITH
PROINDIVIDUALENCE VETERANS
MEDICAL CENTER WHO IS A PTPHD
AND INTERESTED IN HEALTH
RESEARCH AND EVIDENCE TRANSLATES
INTO PRACTICE AND IS DIRECTOR OF
CENTER OF HEALTH SERVICES
TRAINING RESEARCH AND COSTAR FOR
HEALTH RESEARCH MOANING
IMPLEMENTATION SCIENCE AND HAS
RESEARCH FUNDING FROM THE VA AND
HRSRND AND NATIONAL INSTITUTES
OF AGING, HOME INSTITUTE NICHD.
AND NIDRR.
AND EVEN DOD.
SHE LEADS RESEARCH
INFRASTRUCTURE NETWORK AS WELL
AND LEARNING HEALTH SYSTEMS
REHAB RESEARCH NETWORK, LEARN.
IT IS FOCUSED ON KNOWLEDGE
TRANSLATION AND SECOND SPEAKER
THIS MORNING IS CINDY CAI WHO IS
A PRINCIPLE RESEARCHER AT
AMERICAN INSTITUTES FOR RESEARCH
AND IS AN EXPERT ON KNOWLEDGE
TRANCE LAKES.
SHE IS A CO-CHAIR OF THE
KNOWLEDGE TRANSLATION
IMPLEMENTATION COORDINATING
GROUP OF CAMEL CORPORATION AND
PRINCIPLE INVESTIGATOR AND
PROJECT DIRECTOR OF MODEL
SYSTEMS KNOWLEDGE TRANSLATION
CENTER PROVIDING MANAGEMENT
OVERSIGHT INTELLECTUAL
LEADERSHIP ASPECTS OF RESEARCH
DISSEMINATION AND UTILIZATION OF
TASKS AND PRINCIPLE INVESTIGATOR
OF THE PROJECT TO DEVELOP A
TRAUMATIC BRAIN INJURY RESEARCH
BUNDLE FOR AMERICAN INDIANS AND
THIRD SPEAKER IS AMY KILBOURNE,
ACTING DIRECTOR OF VA'S HRS R &
D'S RESEARCH ENHANCEMENT
INITIATIVE QUERY AND NATIONAL
IMPLEMENTATION SCIENCE AND
HEALTH DISPARITIES PARTNER
ORIENTED RESEARCH AND
TRANSLATIONAL CLINICAL QUALITY
IMPROVEMENT AND INTERVENTION
FINDINGS AND INTERACTIONABLE
POLICY AND PRACTICE AND HAVE
THREE PEOPLE THAT KNOW THIS AREA
WELL.
I APPRECIATE THEIR EFFORTS AND
WE WILL START WITH LINDA RESNIK.
>> HELLO, EVERYONE.
I WILL SHARE MY SCREEN. YOU
NEED TO LET ME KNOW IF I'M
SHARING THE RIGHT SCREEN. YOU
WILL SEE MY SLIDE.
ARE YOU SEEING THAT?
>> NOT YET.
RIGHT NOW WE ARE SEEING
[INDISCERNIBLE] BUT IF YOU START
THE PRESENTATION IT SHOULD WORK.
>> OKAY. HOW ABOUT NOW?
>> THAT IS PERFECT. THANKS
FROM.
>> GREAT.
>> THANK YOU FOR THE
INTRODUCTION. I'M POLICED TO
TALK WITH YOU ABOUT PROMOTING
INTEGRATED KNOWLEDGE TRANSLATION
THROUGH HEALTH RESEARCH AND
OBJECTIVES ARE HIGHLIGHT
IMPORTANCE OF KNOWLEDGE
TRANSLATION AND INTRODUCE
TERMINOLOGY OF IT AND SIT WAIT
TRANSLATION RESEARCH IN THE
BROADER ARENA OF HEALTH SERVICE
ROOEZ SEARCH AND HOPE TO LAY A
FOUNDATION FOR TWO TALKS THAT
FOLLOW MINE. YOU HAVE HEARD
ABOUT THE RESEARCH TO PRACTICE
GAP AND TAKES 17 YEARS ON
AVERAGE FOR ORIGINAL RESEARCH TO
BENEFIT PATIENT CARE THAT WAS
FIRST BROUGHT TO PUBLIC
ATTENTION IN 2001 WITH CROSSING
QUALITY KASISM REPORT AND
UNFORTUNATELY THINGS HAVE NOT
REALLY CHANGED IN THE LAST TWO
DECADES AND ARE ESTIMATES IT MAY
BE SLIGHTLY SHORTER FOR
TRANSLATING DRUGS OR DEVICES TO
MARKET. PERHAPS 14 YEARS AND IN
CANCER RESEARCH REDUCED A LITTLE
TO 15 YEARS BUT FACT REMAINS TWO
DECADES LATER THIS IS A
SUBSTANTIAL PROBLEM.
ESTIMATED 30 TO 45 PATIENTS
DON'T RECEIVE EVIDENCE-BASED
CARE AND 25% THAT IS NEEDED IS
-- THERE IS A LACK OF
COMMUNICATION BETWEEN RESEARCH
AND PRACTICE AND RESEARCH
TRANSLATION EFFORTS.
RESEARCH EVIDENCE AND
INTERVENTIONS THAT ARE DEVELOPED
ARE TOO NARROWLY FOCUSED COMPLEX
OR DIFFICULT OR COSTLY TO
IMPLEMENT AND RESEARCH DOESN'T
ENGAGEND USERS DIRECTLY MEETING
NEEDS OF THE COMMUNITY AND
THINKING OF IT AS INVESTMENT IN
ONE PART OF A BRIDGE WITHOUT
SUFFICIENT PLANNING OR
ENGAGEMENT IN UNDERSTANDING HOW
TO CONNECT DIFFERENT SEGMENTS OF
THE BRIDGE SO DRIVERS CAN DRIVE
OVER THE BRIDGE AND USE IT.
SO, RESEARCH TO ENHANCE REACH
IMPLEMENTATION OF IT IN SPACE
APPROACHES KEY OBJECTIVES OF NIH
REHABILITATION PLAN ON
REHABILITATION AND KNOW IN THE
PAST DECADE THERE IS SUBSTANTIAL
PROGRESS DEVELOPING
EVIDENCE-BASED CLINICAL PRACTICE
GUIDELINES IN REHAB AND ARE
CHALLENGES TO IMPLEMENTING BEST
PRACTICES WITHIN HEALTH SYSTEMS
AND RESEARCH AND DISSEMINATION
AND IMPLEMENTATION IN THE
REHABILITATION FIELD IS IN ITS
EARLY STAGES AND SO MANY MISSED
OPPORTUNITIES AND RESEARCH IS
DESIGNED AND IMPLEMENTED BY
RESEARCHERS WITH SPECIALIZED
FUNDING AND PERSONNEL AND
DISSEMINATE RESEARCH THROUGH
PEER REVIEWED JOURNALS AND
SCIENTIFIC CONFERENCES WHERE
SELECT GROUP OF ACADEMICS IS
PRESENT AND IS LIMITED
DISSEMINATION AND EVIDENCE THAT
IS PRODUCED IS NOT TRANSLATED IN
A FORMAT THAT THEEND USERS CAN
USE SO EVIDENCE IS NOT
PRIORITIZED AND SOMETIMES IS NOT
EASILY IMPLEMENTED ANYWAY
BECAUSE OF COMPLEXITY.
THERE IS A MISSED OPPORTUNITY TO
TRANSLATE EVIDENCE INTO ROUTINE
CARE.
THAT IS WHERE KNOWLEDGE
TRANSLATION COMES IN.
THERE ARE MANY DEFINITIONS OF
IT. THIS IS A CAN AIDIAN
DEFINITION BUT GOOD ONE DYNAMIC
ITERATIVE PROCESS INCLUDING
SYNTHESIS EXCHANGE AND ETHICALLY
SOUND APPLICATION OF KNOWLEDGE
FOR SERVICES PRODUCTS
STRENGTHENING THE HEALTH CARE
SYSTEM. KT AIMS TO ENHANCE USE
AND USEFULNESS OF RESEARCH
DESIGN AND CONDUCT OF STUDIES
AND DISSEMINATION OF
IMPLEMENTATION OF FINDINGS
SHARING RESEARCH FINDINGS WITH
INDIVIDUALS THAT COULD USE THEM
AND OVER 10 TERMS ARE SIMILAR TO
KNOWLEDGE TRANSLATION WITH
OVERLAPPING MEANING AND SUBTLE
DIFFERENCES AND ARE TERMS YOU
MAY SEE THAT ARE VERY SIMILAR
KNOWLEDGE TRANSFER AND KNOWLEDGE
EXCHAFK AND NTH TO ACTION AND
DON'T HAVE TO READ IT THEM OUT
LOUD. YOU CAN SEE
IMPLEMENTATION AND DISSEMINATION
ARE TERMS THAT WE WILL TALK MORE
ABOUT THEM.
THIS IS A POPULAR FRAMEWORK FOR
KNOWLEDGE TRANSLATION RESEARCH
INTRODUCED TO GRAHAM IN 2006
THAT IS KNOWLEDGE TO ACTION
FRAMEWORK CONSISTING OF TWO
BASIC PORTIONS, KNOWLEDGE
CREATION FUNNEL IN THE CENTER
AND KNOWLEDGE APPLICATION CYCLE
THAT IS ON THE OUTSIDE.
KNOWLEDGE CREATION AFTER
IDENTIFYING A PROBLEM, THERE IS
AN INQUIRY INTO KNOWLEDGE AND
SYNTHESIS OF KNOWLEDGE AND
DEVELOPMENT OF PRODUCT AND TOOLS
IS KNOWLEDGE CREATION PORTION
AND APPLICATION IS ADAPTING
KNOWLEDGE FOR LOCAL CONTEXT
ASSESSING BARRIERS TO USE
TAILORING INTERVENTIONS
MONITORING KNOWLEDGE USE AND
EVALUATING OUTCOMES SUSTAINING
KNOWLEDGE AND IS A VERY COMMON
FRAMEWORK, KNOWLEDGE TO ACTION
FRAMEWORK AND IS NOT ONLY
FRAMEWORK AND RECENT SCOPING
REVIEW IDENTIFIED 36 THEORETICAL
MODELS AND FRAMEWORKS USED FOR
KNOWLEDGE TRANSLATION. IF
INTERESTED IN LEARNING MORE IT
IS A 2018 PAPER BY STRIFLER THAT
IS WITH MODELS AND FRAMEWORKS
AND WOULD LIKE TO SIT WAIT
KNOWLEDGE TRANSLATION RESEARCH
WITHIN LARGER RESEARCH FRAMEWORK
OF HEALTH SERVICES RESEARCH.
THIS FIGURE FROM MITCH LYNNE
CHAMBERS 27 TAENSHOWS OVERALL
DOMAIN OF HEALTH SERVICES
RESEARCH AND WITHIN IT THE RED
OVAL OF IMPLEMENTATION SCIENCE
AND NONE OF THESE SHAPES ARE TO
SCALE. THIS I THINK
DEMONSTRATES THE POINT AND
WITHIN IMPLEMENTATION SCIENCE
DISSEMINATION RESEARCH AND
IMPLEMENTATION ROOI SEARCH ARE
TWO SEPARATE AND OVERLAPPING
DOMAINS AND YOU CAN SEE WITHIN
DISSEMINATION RESEARCH IS A
LIGHTER BLUE OVAL OF HEALTH
COMMUNICATION RESEARCH AND
DARKER BLUE WITHIN
IMPLEMENTATION RESEARCH OF
QUALITY IMPROVEMENT AND SCIENCE
AND WANT TO OVERLAY KNOWLEDGE
TRANSLA
TRANSLATION.
KNOWLEDGE TRANSLATION OVERLAPS
DISSEMINATION IMPLEMENTATION AND
RESEARCH AND IS A WAY TO THINK
ABOUT RELATIONSHIPS.
HERE IS IMPLEMENTATION RESEARCH
AND SCIENTIFIC STUDY USE OF
STRATEGIES ADOPTING EVIDENCE
BASED HEALTH INTERVENTIONS INTO
COMMUNITY SETTINGS IMPROVING
PATIENT OUTCOMES AND BENEFIT
POPULATION HEALTH AND SCIENTIFIC
STUDY OF TARGETED DISTRIBUTION
OF INFORMATION AND INTERVENTION
MATERIALS TO A SPECIFIC PUBLIC
HEALTH OR CLINICAL PRACTICE
AUDIENCE WITH INTENTION TO BEST
SPREAD AND SUSTAIN KNOWLEDGE AND
ASSOCIATED EVIDENCE-BASED
INTERVENTIONS.
THIS IS ANOTHER DEFINITION OF
KNOWLEDGE TRANSLATION RESEARCH
THAT IS SCIENTIFIC STUDY OF
DETERMINANTS OF KNOWLEDGE USE
AND METHODS TO PROMOTE UPTAKE OF
RESEARCH FINDINGS BY HEALTH CARE
PROVIDERS POLICY MAKERS AND
PATIENTS AND SEE OVERLAP BETWEEN
THREE DEFINITIONS.
CANADIAN INSTITUTE OF HEALTH
CARE RESEARCH CATEGORIZES THREE
BROAD CATEGORIES OF KNOWLEDGE
TRANSLATION SCIENCE AND FIRST IS
STUDYING DETERMINANTS OF
KNOWLEDGE USE AND EFFECTIVE
METHODS PROMOTING UPTAKE OF
KNOWLEDGE AND SECOND IS MORE
TRADITIONAL TYPE OF KNOWLEDGE
TRANSLATION ACTIVITIES THAT WE
ARE USED TO AND END OF GRANT
ACTIVITY AND INITIATIVES
UNDERTAKEN ONCE GRANT AND
RESEARCH HAS BEEN COMPLETED AND
DISSEMINATE TO PEER REVIEW
PAPERS AND CONFERENCES AND THIRD
IS WHAT I WOULD LIKE TO FOCUS ON
THAT IS INTEGRATED KNOWLEDGE
TRANSLATION OR KNOWLEDGE
TRANSLATION ACTIVITIES
INITIATIVES WOVEN INTO THE
ENTIRE RESEARCH PROCESS
COMMUNITY BASED PARTICIPATORY
RESEARCH AND CO-PRODUCTION OF
KNOWLEDGE AND MODE 2 RESEARCH
AND THIS IS COMMUNITY BASED
RESEARCH RATHER THAN
COMMUNITY-PLACED RESEARCH AND
FRAMEWORK IS INTEGRATED
KNOWLEDGE TRANSLATION IS A
PARADIGM SHIFT AND APPROACH THAT
APPLIES PRINCIPLES OF KNOWLEDGE
TRANSLATION TO THE ENTIRE
RESEARCH PROCESS WITH EACH STAGE
AND OPPORTUNITY FOR
COLLABORATION WITH KNOWLEDGE
USERS. FROM DEVELOPMENT AND
REFINEMENT OF QUESTIONS THROUGH
SELECTION OF METHOD OLS AND DATA
COLLECTION TOOLS TO SELECTING
IMPORTANT OUTCOME MEASURES
INTERPRETING FINDINGS CRAFTING
MESSAGE AND DISSEMINATING
RESULTS AND INVOLVEMENT OF
STAKEHOLDERS AT EACH PHASE IS
CONSIDERED THE HOLY GRAIL OF
IMPROVEMENT SCIENCE.
THIS APPLIES NOT ONLY IN
TRADITIONAL CLINICAL RESEARCH
BUT INFORMATION TECHNOLOGY
DEVELOPMENT DEVELOPMENT OF
DEVISES AND TECHNOLOGIES IS BEST
INFORMED BY COLLABORATIVE
RESEARCH WITH INVOLVEMENT OF END
USE HERBS IN DESIGN REFINEMENT
AND USABILITY TESTING
TRADITIONALLY IN ENGINEERING
THINK OF ASPECTS OF USABILITY
TESTING AND PATIENTS AND
CLINICIANS HELP ENSURE THAT
PRODUCT FOR TECHNOLOGY DEVELOPS
AND ADDRESSES END USER NEED AND
IS USABLE BY THOSE WHO NEED TO
IMPLEMENT IT.
NOW, I WOULD LIKE TO TALK ABOUT
THE RELATIONSHIP BETWEEN
LEARNING HEALTH SYSTEMS RESEARCH
AND INTEGRATED KNOWLEDGE
TRANSLATION.
LEARNING HEALTH SYSTEMS, THE
TERM FIRST COINED A WHILE BACK
BY INSTITUTE OF MEDICINE OR ANY
HEALTH SYSTEM THAT CAN
SYSTEMATICALLY INTEGRATE
EVIDENCE AND ESTABLISH WITH
INTERNAL DATA AND REAL WORLD
EXPERIENCE TO PROVIDE QUALITY
SAFER AND MORE EFFICIENT CARE
AND SYSTEMS STUDY AND IMPROVE
THEMSELVES USING DATA ANALYTICS
WHAT WORKS FAST FEEDING
KNOWLEDGE BACK TO CREATE QUALITY
IMPROVEMENT CYCLE AND SCHEMATIC
ON THE RIGHT IS LEARNING HEALTH
SYSTEMS CYCLE BEGINNING WITH
IDENTIFYING A PROBLEM TURNING
DATA INTO KNOWLEDGE.
THEN TURNING THAT KNOWLEDGE INTO
A CHANGE IN PERFORMANCE THAT IS
APPLIED.
AND THEN CHANGE IN PRACTICE
GENERATING NEW DATA PERFORMANCE
TO DATA CYCLE THAT BEGINS NEXT
ITERATION OF THE LEARNING CYCLE.
LEARNING HEALTH SYSTEMS RESEARCH
THEN IS HEALTH SERVICES RESEARCH
CONDUCTED IN REAL WORLD
SETTINGS.
LEARNING HEALTH SYSTEMS RESEARCH
IS IMBEDDED RESEARCH AIMING TO
ADDRESS PROBLEMS AND CHALLENGES
IN QUALITY, SAFETY AND
AFFORDABILITY COUNTED IN
PRACTICE BY LEARNING FROM DATA
GENERATED AS PART OF HEALTH CARE
OPERATIONS AND TRADITIONAL
APPROACH TO RESEARCH, RESEARCHER
IN IVORY TOWERS ISOLATED FROM
HEALTH SYSTEM DEVELOPED RESEARCH
QUESTION AND DESIGNED STUDY AND
MAKE APPROACH A HEALTH SYSTEM
THAT DEPARTMENTING WITH US AND
THEY AGREE AND HELP TO CONDUCT
STUDIES AND RESEARCH MAY NOT
ADDRESS PRIORITIES OF HEALTH
SYSTEM THAT REALLY HAS NO SKIN
IN THE GAME. IN A LEARNING
HEALTH SYSTEMS APPROACH RESEARCH
IS IMBEDDED WITHIN THE HEALTH
SYSTEM WORKING TOGETHER TO
IDENTIFY PRIORITIES AND DEFINE
QUESTIONS AND DESIGN STUDIES AND
RESEARCHER AND HEALTH SYSTEMS
COLLABORATE ON STUDY DESIGN AND
RESEARCH IS CONDUCTED IN
COLLABORATION WITH THE PARTNER
WHO IS INVESTED IN THE RESEARCH
AND FINDINGS MORE LIKELY TO BE
IMPLEMENTED. THIS IS INTEGRATED
KNOWLEDGE TRANSLATION -- IT
INVOLVES INNOVATIVE STUDY
DESIGNS PRAGMATIC CLINICAL
TRIALS DONE USING REAL-WORLD
OPERATIONS AND LEAVAGING REAL
WORLD CARE TO DELIVERY PROCESSES
AND THOUGHT IS THAT THESE
APPROACHES MAKE FINDINGS EASIER
TO TRANSLATE AND MAKE IT MORE
LIKELY RESEARCH EVIDENCE HAS TO
BE ADOPTED AND SCALED UP TO
INCREASE EVIDENCE TO PRACTICE
GAP AND INTERCUE AGENCY FOR
HEALTH QUALITY HAS DONE WORK TO
PROMOTE LEARNING HEALTH SYSTEMS
TO RESEARCH COMPETENCIES THAT
IDENTIFIED 8 COMPETENCY DOMAINS
RESEARCHERS NEED TO KNOW TO
CONDUCT THIS TYPE OF RESEARCH
AND THESE DOMAINS ARE HERE. YOU
WILL NOTICE SOME OF THE DOMAINS
ARE DOMAINS LESS FAMILIAR TO US
AS REHABILITATION RESEARCHERS
THAT WE HAVEN'T HAD TRAINING IF
IN AREAS AND YOU WILL SEE THINGS
LIKE NO. 4 CAPITALIZING ON
INFORMATICS AND NO. 6 OPTIZING
QUALITY IMPROVEMENT
IMPLEMENTATION SCIENCE AND 7
ENGAGING STAKEHOLDERS AND
INTERNSHIP AND RESEARCH
MANAGEMENT TAKING SPECIALIZED
SCALE AND ABILITY AND REALLY
ADDITIONAL TRAINING FOR OUR
RESEARC
RESEARCHERS.
THAT BRINGS US TO LEARNING
HEALTH SYSTEMS REHABILITATION
RESEARCH NETWORK AND DR. NICK
MENTIONED MR3 RESOURCE NETWORKS
PARTNERSHIP BETWEEN UNIVERSITIES
AND HEALTH SYSTEMS AND PURPOSE
IS TO CONDUCT RESEARCH AND BUILD
SKILLS FOR INTEGRATED KNOWLEDGE
AND REHABILITATION AND DIDACTIC
ACTIVITIES DIVIDED BY
DEVELOPMENT OF RESEARCH
COMPETENCIES DIVIDED BY HRQS AND
WEB-BASED RESOURCES AND THAT
SLIDE IS A EXAMPLE FROM THE FALL
WEBINAR SERIES THAT FOCUSED ON
PRAGMATIC TRIAL DESIGN AND
HEALTH EQUITY AND THERE IS
RESEARCH AND DIDACTIC ACTIVITIES
THAT ARE REALLY AVAILABLE AND
ARCHIVED ON THE WEBSITE.
WE DEVELOP APPLIED LEARNING
CASES THAT ARE SPECIFIC EXAMPLES
HOW A RESEARCHER APPLIED A
LEARNING HEALTH SYSTEMS RESEARCH
COMPETENCY TO A REAL WORLD
EXAMPLE AND THERE IS TEACHING
ELEMENTS AND RESOURCE AS
VAILABLE.
ACCOMPANYING THE CASE AND IN
APPLIED PRESENTATION AND WE HAVE
A LEARNING HEALTH SYSTEMS
SCHOLARS PROGRAM BY ROSA AND WE
FUND SCHOLARS TO PARTNER WITH
HEALTH SYSTEMS AND HAVE
TREMENDOUS INTEREST IN THIS
PROGRAM AND RESEARCHERS ARE
REALLY HUNGRY FOR THE
OPPORTUNITY TO ENGAGE IN REAL
WORLD PRACTICE AND DURING YEAR
LONG PROGRAMS SCHOLARS DEVELOP
RELATIONSHIPS WITH HEALTH SYSTEM
STAKEHOLDERS FORMULATING PRANS
TO ADDRESS SYSTEM PRIORITY TOPIC
AND TAKES TIME TO DEVELOP
RELATIONSHIPS AND LEARN ABOUT
SYSTEMS DATA AND CONTACTS
FORMULATING A PLAN AND END OF
THE YEAR THE HEALTH SYSTEM AND
SCHOLAR ARE WELL-POSITIONED TO
TAKE THE WORK TO THE NEXT LEVEL
SEEKING FUNDING FOR THE PROJECT
OR FUND THE PROJECT INTERNALLY
AND WE OFFER A PILOT STUDY
PROGRAM THAT I LEAD IN
CONJUNCTION WITH DR. SHIREMAN
AND WE HAVE GOTTEN PILOTS FOR
RESEARCHERS IMBEDDED ALREADY IN
THE SYSTEM TO ADDRESS A HEALTH
SYSTEM PRIORITY AND HEALTH
SYSTEM ADVANCE KNOWLEDGE
PROCESSES AND OUTCOMES AND PILOT
PROGRAM IS DESIGNED TO PROVIDE
PILOT DATA FOR LARGER STUDIES OR
INTERN ALLY FUNDED STUDIES FROM
THE HEALTH SYSTEM AND WANT TO
END WITH A FEW THOUGHTS HOW WE
CAN STIMULATE INTEGRATED
KNOWLEDGE TRANSLATION AND
REHABILITATION AND IT THINK THAT
INCREASED AVAILABILITY OF
FUNDING OPPORTUNITIES THAT
SUPPORT CONVENING OF STAKEHOLDER
AND RESEARCHER GROUPS FOR
PLANNING PURPOSES THAT ARE
REALLY NECESSARY AND MENTION
THAT THE SCHOLAR PROGRAM IS VERY
POPULAR AND WE HAVE APPLICANTS
INTERESTED IN DOING THIS TYPE OF
WORK AND PLANNING PROCESS AND
THE BEGINNING TO INITIATE
RELATIONSHIPS AND UNDERSTAND
PRIORITIES IS REALLY UNIQUE AND
TAKES TIME TO DO THAT.
I THINK FUNDING AGENCIES COULD
REQUIRE THAT NEW APPLICATIONS
HAVING KNOWLEDGE TRANSLATION
PLAN AND NEED TO PROVIDE LARGER
BUDGETS TO FUND EFFORTS IN
ADDITION TO WHAT RESEARCH
PROPOSALS TYPICALLY DO.
I BELIEVE IF WE HAVE ADDITIONAL
RESEARCH OPPORTUNITIES THAT
SPECIFICALLY REQUIRE PARTNERSHIP
BETWEEN RESEARCHERS AND
KNOWLEDGEND USERS IT WOULD BE
HELPFUL. WE WILL HEAR ABOUT THE
VA QUERY PROGRAM THAT REALLY
DOES THIS.
WE TYPICALLY HAVE BEEN THINKING
ABOUT KNOWLEDGE ANDEND USERS
ONLY AS PATIENTS ANDEND PATIENTS
FAMILIES ARE CRITICALLY
IMPORTANT AND KNOWLEDGEND USERS
ARE CLINICIANS AND HEALTH
SYSTEMS THAT I THINK HEALTH
SYSTEMS RESEARCH IS AN EXAMPLE
HOW WE CAN REALLY TRANSLATE
DIRECTLY INTO PRACTICE AND THINK
THAT WE STILL NEED MORE TRAINING
AND DEVELOPMENT OF THE -- WE
HAVE RESEARCH COMMUNITY TO TEACH
SKILLS NEEDED FOR INTEGRATED
KNOWLEDGE TRANSLATION AND
LEARNING HEALTH SYSTEMS RESEARCH
WAPD THAT, I WILL END AND IF YOU
WANT TO CONNECT WITH
[INDISCERNIBLE], HERE IS OUR
INFORMATION. THAT IS MY E-MAIL
ADDRESS. I WANT TO THANK YOU
VERY MUCH. I'M LOOKING TOERRED
TO THE NEXT TALKS AND QUESTIONS.
THANK YOU. WE HAVE TIME FOR A
FEW QUESTIONS.
BOB?
>> THANK YOU. EXCELLENT TALK ON
A TOPIC THAT IS INCREDIBLY
IMPORTANT AND SAID A QUESTION
ABOUT THE INTEGRATED KNOWLEDGE
TRANSLATION PROCESS THAT YOU
TALKED ABOUT WHERE ONE
COLLABORATES WITH THE CURRENT --
WITH CURRENT HEALTH PRACTICE IN
-- YOU KNOW, IN DESIGNING A
STUDY. I WANTED TO ASK YOU.
STEPHANIE GAVE A GREAT TALK
YESTERDAY ABOUT AN APPROACH THAT
DOESN'T FIT WITHIN THE CURRENT
HEALTHCARE TLIFRY SYSTEM. DO
YOU HAVE IDEAS ABOUT IN THAT
PARTICULAR CASE HAS TO DO WITH
HIGH INTENSITY DOSE AND FACT
THAT SYSTEM WILL NOT -- YOU
KNOW, THERE IS OTHER THINGS BUT
SYSTEM WON'T REIMBURSE THAT TIME
WITH A CLIENT.
DO YOU HAVE IDEAS ABOUT HOW TO
DO INTEGRATED HEALTH CARE
DELIVERY WHEN YOU ARE STUDYING
VIEWERS FROM WHAT THE CURRENT
SYSTEM IS STRUCTURED TO DO?
I'M THINKING WILL COLLEAGUES AT
BROWN AT Q & I CENTER WHERE THEY
ARE SPECIFICALLY FUNDING
INTEGRATED RESEARCH THAT IS
IMBEDDED WITHIN NURSING HOMES TO
EXAMINE INNOVATIONS AND THINK
THAT THE KEY IS THAT THE HEALTH
SYSTEM PARTNER, THIS NEEDS TO BE
A PRIORITY QUESTION OF THE
HEALTH SYSTEM PARTNER AND THEY
NEED TO BE INTERESTED ENOUGH TO
KNOW HOW CAN WE ADVANCE AND WE
HAVE STICKY PROBLEM WHERE OUR
PATIENTS AND I'M SORRY I DIDN'T
HEAR THE TALK YESTERDAY. OUR
PATIENTS TRY TO REPROGRESS AND
WE ARE NOT GETTING OUTCOMES WE
WANT AND NEED TO MOVE THE NEEDLE
HERE. HOW CAN WE DO BER /*
BETTER AND STAKEHOLDERS HAVE TO
BE STRONGLY MOTIVATED AS A FIRST
TO BE ABLE TO DO THAT TOGETHER.
I THINK THAT IS KEY. IF DRIVE
FOR RESEARCH COMES OUT OF THE
HEALTH SYSTEM TRUE NEED AND
STRONG INTEREST WILL LAY
FOUNDATION AND MAYBE WITH SOME.
THESE CAN BE EXTERNALLY FUNDED
BUT THE DESIGN AND THE
IMPLEMENTATION OF THE RESEARCH
HAS TO BE CONDUCTED IN
PARTNERSHIP.
>> THANK YOU.
>> GREAT. WITH THAT, LET'S MOVE
TO THE NEXT TALK. WE WILL TAKE
QUESTIONS FOR ALL THREE OF YOU
AS WELL.
>> THANK YOU.
>> CINDY, READY TO MAKE YOUR
PRESENTATION?
>> YES. THANK YOU SO MUCH FOR
THE KIND INVITATION. TRYING TO
SHARE MY SCREEN.
TODAY I WOULD LIKE TO TALK ABOUT
PROVIDING SUPPORT TO CREATE
CULTURE AND PROVIDING INCENTIVE
FOR THEM TO DO SO.
HERE IS AN OVERVIEW. I WILL
SHARE LESSONS LEARNED FROM THE
MODEL SYSTEMS PROGRAM WORKING
WITH THEM AND MODELS OF
NONTRANSLATION CENTER AND I'M
GOING TO SHARE THIS DEFINITION
WE HAVE USED IN CONDUCTING
KNOWLEDGE TRANSLATION ACTIVITIES
WITH MODEL SYSTEMS THAT IS
DEFINED BY NATIONAL INSTITUTE OF
DISABILITY IN INDEPENDENT LIVING
REHABILITATION RESEARCH FOR
SHORT AND SHARING INFORMATION
ABOUT SUPPORT AND RESOURCES FOR
PATIENT RESEARCHERS AND LESSONS
LEARN BD CREATING CULTURE AND
INCENTIVES FOR RESEARCHERS TO
ENGAGE IN KT MODEL SYSTEM
PROGRAMS ARE DESIGNED TO IMPROVE
CARE AND OUTCOMES FOR PEOPLE
LIVING WITH SPINAL CORD INJURY.
THERE IS THREE MODEL SYSTEM
PROGRAMS AND PROVIDE
MULTI-DISCIPLINARY SYSTEM AND
REHABILITATION CARE AND AIMS TO
ALSO BUILD TREATMENT FOR PEOPLE
WITH SPINAL CORD INJURY AND
BRAIN INJURY AND DEVELOP
MEASUREMENTS AND MEDICATIONS AND
CLINICAL PRACTICE TO SUPPORT
PEOPLE LIVING WITH
[INDISCERNIBLE] AND ARE THREE
MODEL SYSTEM PROGRAMS HERE THAT
YOU CAN LEARN MORE ABOUT THEM
USING THIS Q.R. CODE MODEL
SYSTEMS TRANSLATION CENTER IS
ESTABLISHED TO WORK WITH MODEL
SYSTEMS TRANSLATION RESEARCHERS
AND -- AND DEVELOP AND TRANSLATE
RESEARCH INTO RESEARCH-BASED
RESOURCES TO SUPPORT PEOPLE
LIVING WITH [INDISCERNIBLE] AS
WELL AS THOSE STAKEHOLDER FOR
SUPPORT AND CLINICIANS AND
POLICY MAKERS AND BOTH MODEL
SYSTEMS PROGRAMS ARE FUNDED BY
NID
NIDLR.
I WOULD LIKE TO SHARE KNOWLEDGE
TRANSLATION DEFINITION FROM
NIDLR. HEARING FROM THE
PREVIOUS PRESENTATION SO MANY
TRANSLATION DEFINITIONS AND HERE
IS THE DEFINITION FROM NIDLR
LONG-TERM PLAN MULTIDIMENSIONAL
THAT IS ACTIVE PROCESS AND
ENSURING NEW KNOWLEDGE AND
PRODUCTS AIMED THROUGH COURSE OF
RESEARCH THAT ULTIMATELY
IMPROVES LIFE OF PEOPLE WITH
DISABILITY AND FURTHER THEIR
PARTICIPATION IN SOCIETY AND
KNOWLEDGE TRANSLATION IS KEY
FEATURES FOR KNOWLEDGE
TRANSLATION TO BE SUCCESSFUL AND
NEW KNOWLEDGE AND PRODUCTS MUST
HAVE RELEVANCE THAT ADDRESS THE
REAL ISSUES PEOPLE FACE AND NEED
TO ADDRESS WHAT PROBLEMS ARE AND
NO THE WHAT RESEARCHER DEFINED
BUT DEFINED BY PEOPLE WHO ARE
FACING CHALLENGESEND USERS AND
STAKEHOLDERS AND USED TO HAVE
FEASIBILITY THAT OFFERS HELPFUL
INFORMATION SOLUTIONS TO ADDRESS
ISSUES AND NEEDS TO BE
ACCESSIBLE OR HAVE USABILITY AND
NEEDS TO HAVE REACH AND PEOPLE
NEED TO KNOW THEM. SO, NEED TO
BE DISSEMINATED EFFECTIVELY AS
WELL GOAL OF KNOWLEDGE
TRANSLATION IS HELPING USERS TO
MAKE INFORMED DECISION AND
EMPOWERING THEM TO TAKE ACTION
TO CHANGE BEHAVIOR TO PRACTICE
POLICY OR SYSTEMS AND NIDLR'S
DEFINITION IS STAKEHOLDER
ENGAGEMENT ORREND USER
ENGAGEMENT IS KEY TO MAXIMIZE
FEASIBILITY AND [INDISCERNIBLE]
AND ARE KEY FEATURES OF
KNOWLEDGE AND PRODUCTS THAT IS
CRUCIAL THAT RESEARCH ENGAGE
PEOPLE WITH DISABILITY NOT
STAKEHOLDERS IN ALL COMPONENTS
NO THE JUST END CYCLE OF
TRADITIONAL KT BUT ALL
COMPONENTS IN KT PROCESS
STARTING FROM INITIAL
IDENTIFICATION NEEDS AND
PRODUCTS AND WITH THIS I WANTED
TO SHARE SOME RESOURCES THAT WE
ARE PROVIDING FOR MODEL SYSTEM
RESEARCHERS.
AS WELL AS, YOU KNOW, SOME OF
THE SUPPORT AND EXAMPLES OF
SUPPORT FOR RESEARCHERS NO THE
JUST FROM THE NIDLR
[INDISCERNIBLE] AND
[INDISCERNIBLE] THAT ARE KT
CENTERS FOR EXAMPLE NIDLR FUNDS
FIVE KNOWLEDGE TRANSLATION
CENTERS ONE IS CENTER FOR
KNOWLEDGE TRANSLATION FOR
DISABILITY WITH PATIENT RESEARCH
AND KTDRR AND ANOTHER IS
EMPLOYMENT FOCUSED CENTER
KNOWLEDGE TRANSLATION FOR
EMPLOYMENT RESEARCH AND THERE IS
ANOTHER ONE FOR A KNOWLEDGE
TRANSLATION CENTER TO SUPPORT
AMERICANS WITH DISABILITIES ACT
NETWORK.
THAT IS MODEL SYSTEM TRANSLATION
CENTER THAT SUPPORTS MODEL
SYSTEM RESEARCHERS THAT IS ALSO
IMPACT CENTER THAT SUPPORTS
TECHNOLOGY TRANSFER CENTER FOR
TECHNOLOGY RESEARCHERS AS WELL
AND PRIVILEGE TO WORK ON PECORI
FUNDED KT CENTER IN PAST COUPLE
YEARS AND PECORI FUNDS KT CENTER
AS WELL.
THERE IS MANY KNOWLEDGE
TRANSLATION RESOURCES THAT
DEVELOP TO SUPPORT OUR
RESEARCHERS.
HERE IS EXAMPLES THAT DEVELOP
MODEL SYSTEM KNOWLEDGE
TRANSLATION CENTER KTC AND WITH
DEVELOPING OVER 60 TOOLS ON OUR
WEBSITE, FOCUSED ON DIFFERENT
ASPECTS OF KNOWLEDGE TRANSL
TRANSLATION.
SO, RECENTLY WE DEVELOPED THREE
COURSES TO SUPPORT RESEARCHERS
AND CLINICIANS TO ENGAGE IN
KNOWLEDGE TRANSLATION.
THESE ARE THREE COURSES. ONE IS
FOR OT AND ANOTHER ONE IS FOR
OCCUPATIONAL THERAPISTS AND PT
PHYSICAL THERAPIST AND ANOTHER
IS SPEECH LANGUAGE PATHOLOGIST
AND EACH COURSE WE HAVE ONLINE
SELF-PACE COURSE AND INSTRUCTORS
GUIDE AND PROMOTION OF MATERIALS
THAT PEOPLE CAN SHARE WITH
OTHERS AND MAKING IT EASY TO
SUPPORT STAKEHOLDER ENGAGEMENT
WE ALSO DEVELOP AN ONLINE COURSE
FOR RESEARCHERS SO THAT THEY
LEARN HOW TO ENGAGE HOUSING AND
THIS IS POLICY MAKER ENGAGEMENT
COURSE WITH REAL-LIFE SCENARIOS
HOW TO DEVELOP ELEVATOR SPEECH
AND HOW TO SHARE THEIR RESEARCH
FINDING WITH POLICY MAKERS THAT
MAKE REAL POLICY IMPACT.
THERE IS ALSO KT RESOURCES
DEVELOPED AT [INDISCERNIBLE] AND
NIDR FUNDED AND FOR EXAMPLE THEY
HAVE KT STRATEGY-BASED AND OTHER
RESOURCES AS WELL THAT IS IMPACT
CENTER TO SUPPORT TECHNOLOGY
TRANSFER AND THEY DEVELOPED
WEBINARS AND ALSO PROVIDE
RESOURCES AS WELL AND CAMS FOR
RESEARCHERS AND PECORI DEVELOPED
LOTS OF RESOURCES TO ENGAGE AND
HELP RESEARCHERS TO ENGAGE
STAKEHOLDERS.
>> SO, RESOURCES TO SUPPORT
STAKEHOLDER RESEARCH TO --
EXCUSE ME.
RESOURCES TO SUPPORT STAKEHOLDER
-- RESEARCHERS ENGAGE
STAKEHOLDER IMPORTANT THAT IS
IMPORTANT AND IS IMPORTANT TO
EDUCATE CONSUMERS ANDEND USERS
TO ENGAGE IN RESEARCH PROCESS.
NOW, HERE IS RESEARCH RESOURCES.
PECORI DEVELOPED THEM TO SUPPORT
CONSUMERS TO DO THAT.
ENGAGING LEARNING ABOUT RESEARCH
AND HOW TO WORK WITH A RESEARCH
TEAM AND IS SOME ORGANIZATIONS
THAT DEVELOP RESOURCES TO
SUPPORT CONSUMERS AS WELL AND
NORTH AMERICA SPENDING CONSORTIM
AND DEVELOPED ADVOCACY COURSE
PEOPLE SPENDING WITH FAMILIES
ENGAGING IN RESEARCH.
NOW, I WOULD LIKE TO TALK ABOUT
NEXT IS ABOUT CREATING A CULTURE
FOR RESEARCH TO ENGAGE IN.
MODEL SYSTEMS, WE HAVE
ESTABLISHED THIS KT COMMITTEES
WE CALL THEM.
FOR EACH MODEL SYSTEM PROGRAM,
THERE IS A TRANSLATION COMMITTEE
THAT HAS CHAIRS AND MEMBERS AND
ALL MEMBERS ACTUALLY CAN BE
CHAMPIONS AND KT THAT MEET
REGULARLY TO DISCUSS OR SET
VISION AND DEVELOP PLANS AND
CARRY OUT ACTIVITIES ABOUT
KNOWLEDGE TRANSLATION. THERE IS
ALSO STRONG LEADERSHIP EMPHASIS
AND KNOWLEDGE TRANSLATION AS
WELL AND THINK OF RECENT NOT
LONG AGO AT TD MODEL SYSTEM
PROJECT OR MEETING THAT HAD THE
STRATEGIC PLANNING SESSIONS.
ONE -- ONE OF THEM IS
TRANSLATION ABOUT STAKEHOLDER
ENGAGEMENT AND STRATEGIES ABOUT
MESSAGING AND ENGAGINGEND USERS
AND WITH ALL THESE COULD REALLY
HELP TO CREATE A CULTURE FOR
KNOWLEDGE TRANSLATION AND
SUPPORT RESEARCHERS TO ENGAGE IN
THIS PROCESS.
WE HAVE ALSO ENGAGED IN MODEL
SYSTEM MODEL TRANSLATION
ENGAGING RESEARCHERS IN
DEVELOPING RESEARCH-BASED FREE
RESEARCH BASED RESOURCES TO
SUPPORT PEOPLE LIVING IN
[INDISCERNIBLE] AND CREATED
WORKING WITH THEM CREATING A
VIBRANT WEBSITE AND 4,000 PEOPLE
COMING TO THE WEBSITE NOW, WE
HAVE 1.7 MILLION WITH 2 MILLION
VISITS EACH YEAR AND 230
COUNTRIES AND RESOURCES ARE HIGH
QUALITY AND REHABILITY
RESEARCHERS ARE FOCUSING ON
DAILY LIVING AND COMMUNITY AND
PARTICIPATION AND HEALTH AND
FUNCTION TO SUPPORT PEOPLE.
THOSE ARE SPINAL CORD INJURY
RESOURCE TOPICS AND SOME SAMPLE
TBI RESOURCE TOPICS.
WE DEVELOPED RESOURCES IN
MULTIPLE FORMAT TO MAKE SURE
THAT THEY TAILOR TO ALL AND USE
DIFFERENT LEARNING STYLES OF
STAKEHOLDERS AND WE HAVE FAQ
SHEETS. BOTH CLINICIAN FAQ
SHEETS AND FAQ SHEETS FOR PEOPLE
LIVING WITH THE INJURY AND THEIR
FAMILIES AND WE HAVE COMETIC IC
--
WE HAVE A PODCAST AND NARRATIVE
SLIDESHOWS AND INFOGRAPHICS AND
JUST ONE PAGE OR TWO PAGES TO
SHOW IN A GRAPHIC FORMAT KEY
INFORMATION PEOPLE CAN TAKE AWAY
AND IMPLEMENT AND WE HAVE
COURSES FOR PEOPLE AND VIDEOS
THAT ARE AWARD WINNING VIDEOS
AND DURING PANDEMIC WE CREATED
SPANISH PORTION OF WEBSITE THAT
RESULTS THAT WE HAVE SO MUCH
TRAFFIC FROM SPANISH-SPEAKING
COUNTRIES TO THE WEBSITE AND
OVER THE YEARS THOSE WILL HAVE
WON NINE INDUSTRY AWARDS AND SO
WE ENGAGE CONSUMERS AND
STAKEHOLDERS DISSEMINATING AS
WELL AND WE HAVE TRAINED 100
AMBASSADORS AND [INDISCERNIBLE]
AND WE DEVELOPED A FEATURE
AMBASSADOR STORIES TELLING FUN
FACTS ABOUT THEM AND JOURNEY OF
OVERCOXING AND WHAT THEY HAVE
DONE AS AMBASSADOR TO SHOWCASE
SO OTHERS CAN LEARN AND TELL
THEM WHY THEY BECAME AMBASSADOR
AND SHARE ALSO RESOURCES AND HOW
THEY HAVE BEEN HELPFUL TO THEM.
REAL LIFE STORIES TO CREATE
COMMUNITY TO ENCOURAGE AND
SUPPORT AND DEVELOPING IN-DEPTH
CASE STUDIES FOR SUCCESSFUL
AMBASSADORS AND RECENT
AMBASSADOR SOMEONE WITH A SPINAL
CORD INJURY DEVELOPED A CAMPAIGN
TO BECOME AN AMBASSADOR AND
TRACKING SYSTEM FOR AN
AMBASSADOR AND ARE WORKING ON
DEVELOPING MORE IN-DEPTH CASE
STUDIES SO OTHERS CAN LEARN TO
IMPLEMENT THIS PROGRAM AND
EVERYTHING WE DO IS BASED IN
KNOWLEDGE TRANSLATION RESEARCH
AND WE HAVE A SURVEY TO ASK WHAT
TOPICS THEY WANT TO HAVE
INFORMATION AND FORMAT AND
RECEIVE INFORMATION AND SUPPORT
TO BETTER UPTAKE OUR RESOURCE.
ANOTHER THING CREATING CULTURE
IS ROLE OF PROFESSIONAL
ORGANIZATION AND DID QUICK
RESEARCH KNOWLEDGE TRANSLATION
AND REHAB RECENTLY AND FOUND
OVER 2000 RECORDS AND ARTICLES
PUBLISHED IN REHAB JOURNALS AND
DIFFERENT KINDS OF JOURNALS AND
ALSO NOW JOURNALS ARE REQUIRING
KNOWLEDGE TRANSLATION COMPONENT
NOW AND I'M EDITOR OF KNOWLEDGE
TRANSLATION AND IMPLEMENTATION
COORDINATING GROUP FOR CAMABLE
COLLABORATION THAT IS A HISTORIC
[INDISCERNIBLE] FOR COCRIN AND
HERE ARE EXAMPLE STANDARDS FOR
THE MANUSCRIPT.
THERE IS TWO CONCERN THE WITH
STAKEHOLDERS ENGAGEMENT AND THAT
IS IN THIS PROCESS.
[INDISCERNIBLE] HAS CONDUCTED
MANY KT-BASED RESEARCH
ACTIVITIES.
IN RESEARCH STUDY WE FOUND
FACILITY RESEARCH UPTAKE THEY
MUST BE EASILY ACCESSIBLE AND
DIGEST ABOUTABLE INCLUDING
CLINICAL PRACTICE
RECOMMENDATIONS AND THAT WE
DEVELOPED A PAPER TO PROPOSE
FRAMEWORK TO DEFINE RELEVANCE
AND MEASURE RELEVANCE AND
CONDUCTING RESEARCH TO -- THAT
REALLY ACHIEVE THE RELEVANCE
GOAL.
ALSO, I THINK THAT RESEARCHERS
ARE QUITE SMART. ANOTHER WAY TO
HELP THEM TO FOCUS ON KNOWLEDGE
TRANSLATION WHERE STAKEHOLDER
ENGAGEMENT THROUGH THE GRANT
FUNDING AND I'M VERY FORTUNATE
TO HAVE A KNOWLEDGE TRANSLATION
GRANT FROM NIDLR, WHICH IS TO
TRANSLATE FINDINGS RESEARCH INTO
A BUNDLE FOR AMERICAN INDIANS.
SO, WHEN I -- I LOOK AT THE
CRITERIA FROM THE FUNDING AGENCY
AND HOW TO SCORE MY PROPOSAL AND
MAKE SURE FOR STAKEHOLDER
ENGAGEMENT I MAKE SURE IS THERE
AND MAKING GRANT REVEL LENT I
MAKE SURE TO SCORE HIGH
ADDRESSING ELEMENTS AND QUICK
SEARCH OF PECORI ABOUT CURRENT
FUNDING OPPORTUNITIES AND THEY
ARE 180 AT TIME I SEARCH AND
DISTRIBUTION 100 RESEARCH AND 31
IN ENGAGEMENT RESEARCH AND 30 IS
IMPLEMENTATION RESEARCH AND
[INDISCERNIBLE] IS RESEARCH
INFRASTRUCTURE AND WITH THIS YOU
SEE FOEKUS OF FUNDING AND 1/3 IS
KNOWLEDGE TRANSLATION ENGAGEMENT
AND IMPLEMENTATION AND I WAS
FORTUNATE TO RECEIVE FUNDING
FROM CDC AND DESIGNED THIS STUDY
THAT APPLY IN KNOWLEDGE
TRANSLATION STRATEGIES.
ONE, TO CONDUCT POLICY MAKER
NEEDS STUDY TO UNDERSTAND WHAT
DATA AND POLICY INFORMATION THEY
NEED FOR TRAUMATIC BRAIN INJURY
AND USE THAT INFORMATION TO HAVE
RECOMMENDATION AND POLICY MAKER
FACT SHEET THAT IS MODERATE TO
SEVERE TRAUMATIC BRAIN INJURY
THAT IS LIVE CONDITION AND BRAND
OF CDC NIGHT PRODUCT AND POLICY
MAKER TOLD TWO PAGERS AND POLICY
COMMUNICATION WE GAVE THEM THAT
AND THEY WANTED TO KNOW IMPACT
FIRST PAGE OF POLICY MAKER.
SO, THAT IS THE END OF MY
PRESENTATION IF YOU HAVE
QUESTIONS.
PLEASE LET ME KNOW. HERE IS MY
CONTACT INFORMATION AND
DISCLAIMER AND FUNDING AGENCY
VIEW.
>> THANK YOU, CINDY. DO WE HAVE
QUESTIONS?
OKAY. THANK YOU FOR WONDERFUL
TALKS. I WANT TO GO BACK TO
STEPHANIE'S LOVELY TALK
YESTERDAY ON MOVEMENT THERAPY
AND FOR INTERVENTIONS THAT
EITHER BAUS OF DOSING INTENSITY
AND MAYBE THEY ARE A BIT MORE
COMPLEX. I'M USING THAT WORD
LOOSELY. ARE YOU -- ARE WE
CAPTURING FIDELITY FOR -- THERE
IS A CLEARER ROLE FOR CAREGIVERS
IN THE HOME TO HELP IMPLEMENT
INTERVENTIONS AND ARE THERE
OPPORTUNITIES FROM PARTNERSHIPS
BETWEEN CLINICIANS AND
CAREGIVERS AS SUCH THAT
CAREGIVERS BECOME THE
INCREMENTERS AND UNDER
SUPERVISION OF THE CLINICIAN IF
THAT MAKES SENSE AND CLINICIANS
MAYBE WANT TO REVIEW
IMPLEMENTATION AND GIVE FEEDBACK
ON FIDELITY AND ARE WE CAPTURING
SUCH INTERVENTIONS AND HOW THOSE
ARE BEING IMPLEMENTED
POTENTIALLY?
>> THANK YOU SO MUCH FOR THAT
QUESTION. THAT IS AN EXCELLENT
QUESTION THAT IS CONCERNING
IMPLEMENTATION AND TRANSLATION
OF THE RESEARCH MAKING IT MORE
USEFUL FOR PEOPLE AND USERS NOW
APPRECIATE THAT PERSPECTIVE AND
THANKS SO MUCH FOR ASKING THAT
CRITICAL QUESTION THAT WE SHOULD
ALWAYS FOCUS ONNEND USERS THAT
RESEARCH EFFECTS.
SO, UNFORTUNATELY, I WASN'T AT
THE PRESENTATION YESTERDAY. I
DIDN'T KNOW WHAT WAS PRESENTED.
THE PRINCIPLE OF KNOWLEDGE
TRANSLATION AND KEY FEATURE OF
KNOWLEDGE TRANSLATION THAT IN MY
VIEW IS A STAKEHOLDER ENGAGEMENT
WHETHER FROM NIDLR'S DEFINITION
OR ITK INTEGRATED KNOWLEDGE
TRANSLATION FRAMEWORK
STAKEHOLDER ENGAGEMENT IS VERY
CRITICAL AND INTERVENTIONS
CONCERNINGEND USERS THAT IS
CAREGIVER THEY HAVE TO PROVIDE
INPUT AND ENGAGE FROM THE
SELECTION OF INTERVENTION.
FEASIBILITY OF IT AND TO
IMPLEMENTATION STRATEGIES AND
WHETHER IT IS CLINICIANS AND
CLINICIANS NEED TO BE PART OF IT
AND WHETHER THAT IS REALLY GOING
TO WORK FEASIBLE OR NOT.
SO, MY -- YOU KNOW, I HOPE THAT
THE KEY FEATURE OF TRYING TO
PRESENT ABOUT KNOWLEDGE
PRANCELATION THROUGH
PRESENTATION ABOUT STAKEHOLDER
ENGAGEMENT THAT EFFECTS ALL
ASPECT OF RESEARCH THAT
PRINCIPLE COULD HELP ADDRESS THE
QUESTION THAT YOU RAISED.
>> THAT IS TERRIFIC. WE HAVE A
FEW QUESTIONS AND MOVING TO THE
THIRD SPEAKER TO TAKE QUESTIONS
FOR ALL THREE OF YOU.
LAST SPEAKER IS AMY KILBOURNE.
AMY, ARE YOU ALL SET?
PERFECT.
>> SHARING SLIDES NOW.
CAN YOU SEE THAT?
>> YES, WE CAN.
>> GREAT. THANK YOU FOR THE
OPPORTUNITY TO PRESENT. I'M
REALLY FORTUNATE TO BE COMING
RIGHT AFTER CINDY AND LINDA WHO
HOPEFULLY I CAN PROVIDE SOME
ADDITIONAL INFORMATION ABOUT
KNOWLEDGE TRANSLATION AND
MEDICAL REHABILITATION RESEARCH
AND APPRECIATE THEM LAYING THE
GROUNDWORK. THERE IS AMAZING
WORK THEY HAVE DONE SO FAR.
HOPEFULLY I CAN GO THROUGH THIS
FAIRLY ROBUSTLY AND QUICKLY TO
HAVE TIME FOR QUESTIONS AS WELL.
I'M DIRECTOR OF QUALITY
ENHANCEMENT RESEARCH INITIATIVE
AND PROGRAM IN US DEPARTMENT OF
VETERANS AFFAIRS DEVOTED TO
FUNDING INVESTIGATORS TO DO
KNOWLEDGE TRANSLATION AND
IMPLEMENTATION SCIENCE WORK AND
ARE ENCOMPASSED ABOUT I LARGER
NATIONAL PROGRAM OF RESEARCH
WHICH I WILL TALK ABOUT SHORTLY.
LET'S SEE IF I CAN. YES.
>> WE ARE SHARING SLIDES.
CAN YOU TELL US NEXT?
>> SURE. THAT IS EVEN BETTER.
YEAH. NEXT SLIDE, PLEASE.
THANK YOU.
>> GO AHEAD. YOU CAN GO THROUGH
THE SLIDE. I WANT TO PRESENT
THE BIG PICTURE HERE THAT IS
IMPORTANT TO REMEMBER WHY WE DO
KNOWLEDGE TRANSLATION OR
IMPLEMENTATION RESEARCH THAT IS
BECAUSE IT IS REALLY ABOUT THIS
IDEA THAT WE USED TO TALK ABOUT
INVESTIGATOR INITIATED RESEARCH
AS PUBLISH OR PERISH AND DOING
IMPACTFUL RESEARCH WE HAVE TO
PARTNER OR PERISH MEANING WE
WORK WITH HEALTHCARE SYSTEMS
CONSUMERS FAMILY MEMBERS AND
COMMUNITIES AND NEED TO
UNDERSTAND SOCIAL DETERMINANTS
THAT DRIVE OFTEN DISPARITIES AND
HEALTH INEQUITIES FOR EXAM AND
NEED FOR UNDERSTANDING ROLE OF
CONSUMER DRIVEN CARE THAT
BASICALLY LOTS OF PEOPLE ARE
BEING EMPOWER TODAY ASK
PROVIDERS THIS IS WHAT I LIKED
FOR MY OWN HEALTHCARE AND WE
NEED TO THINK ABOUT GOING BEYOND
ACADEMY AND SOME PICTURES HERE
ARE EXAMPLES OF THIS IS A
STOREFRONT IN LOS ANGELES WHERE
THE LATINO POPULATION WAS
POSTING THEIR -- THEY ACTUALLY
HAD PRICE TRANSPARENCY ABOUT
MEDICAL SERVICES BEFORE POLICY
MAKERS WERE THINKING ABOUT PRICE
TRANSPARENCIES AND WERE BEING
INNOVATORS IN THEIR COMMUNITIES
AND ROLE OF TECHNOLOGY AND
ARTIFICIAL INTELLIGENCE
POTENTIAL FOR RACIAL BIAS
BECAUSE OF TECHNOLOGIES AND
OPPORTUNITY TO MITIGATE BIASES.
GO AHEAD. NEXT SLIDE.
WHY WE HAVE 17 YEAR RESEARCH TO
PRACTICE GAP. FIRST OFF IS
RESEARCH TIMELINES DON'T MATCH
OFTEN WITH COMMUNITY NEEDS AND
HAPPENS BECAUSE OF FIRST GRANT
SUBMISSION THAT IS AT LEAST 6
YEARS AND OFTEN TIMES DECISIONS
ARE MADE WITHOUT WAITING FOR
RESEARCH AND IN ADDITION THERE
IS MISMATCHED PRIORITIES AND
INCENTIVES AND LEADERS WANT
SPECIFIC AND TIMELY ANSWERS AND
LACKIN KRENTIVES FOR COMMUNITY
ENGAGEMENT FOR BASICALLY DOING
COMMUNITY ENGAGED RESEARCH.
SO MUCH IS FOCUSED REALLY ON A
COMMUNITY AND YOU ARE NOT
SPENDING TIME WRITING UP
RESEARCH RESULTS THAT I WOULD
SAY HONESTLY ARE MORE AND MORE
JOURNALS THAT WANT TO HEAR ABOUT
COMMUNITY ENGAGEMENT HAPPENING
BEFORE RESEARCH IS BEING DONE
AND IN ADDITION IS A LACK OF
PLANNING FOR FUTURE SCALE-UP OF
NEW TREATMENTS AND VALUE
PROPOSITION WAS A QUESTION ABOUT
PRESENTATION YESTERDAY REFERRED
TO ABOUT A NEW INNOVATION AND IN
MANY RESPECTS WE OFTEN THINK
ABOUT DESIGNING INNOVATIONS
WITHOUT THINKING ABOUT THEEND
USER IN MIND.
WE WANT TO ALSO AVOID WHAT WE
OFTEN SEE AS HELICOPTER RESEARCH
WHERE RESEARCHERS GO INTO LOWER
RESOURCED COMMUNITY AND DO
RESEARCH AND LEAVE AND NOT SHARE
RESULTS AND LET ALONE SHARING
HOW THEY IMPLEMENT THINGS.
NEXT SLIDE, PLEASE.
BASICALLY, I WILL REITERATE
AGAIN IMPLEMENTATION SCIENCES
THAT IS SAME AS KNOWLEDGE
TRANSLATION AND ARE ONE IN THE
SAME IN MANY RESPECTS IN TERMS
OF WAYS THAT WE OPERATIONALIZED
IT HERE WITHIN NIH AND VA
RESEARCH PARTICULARLY AND IDEA
IS IT IS PROBLEM FOCUSED ON
PROBLEMS THAT COMMUNITIES AND
STAKEHOLDERS IDENTIFY AND
RESEARCH IS IMBEDDED IN A LARGER
HEALTHCARE SYSTEM OR COMMUNITY
ORGANIZATION FOR EXAMPLE.
WITH THE IDEA THAT YOU ARE
INFORMING HOW THE TREATMENT
COULD BE ACTUALLY USED BIEND
USERS WHEN RESEARCH GOES AWAY.
SO, BASICALLY, IT IS AN IDEA OF
ESSENTIALLY INVOLVING
COMMUNITIES HEALTH SYSTEMS AND
CONSUMERS UP FRONT IN
PRIORITIZATION WHAT YOU ARE
STUDYING AND RESEARCH QUESTIONS
OF IMPLEMENTATION SCIENCE FOCUS
LESS ON DOES TREATMENT WORK AND
ACTUALLY BEHAVIOR CHANGE THAT
ACCELERATES USE OF EFFECTIVE
TREATMENT INTO ROUTINE CARE
SETTINGS ESPECIALLY FACED WITH
ORGANIZATIONAL CONSTRAINTS AND
FOR EXAMPLE IMPLEMENTATION
RESEARCH WILL TACKLE QUESTIONS
ABOUT PATIENT COMMUNITY FAMILY
DECISIONS TO RECEIVE EFFECTIVE
TREATMENT AND IF THEY WANT TO
HAVE NEW TREATMENT OR TECHNOLOGY
AND EXISTING PROVIDERS DECISIONS
USE EFFECTIVE TREATMENT AND
CLINICAL PRACTICE AND COMMUNITY
HEALTH SYSTEM DECISIONS TO
FACILITATE TREATMENT ADOPTION
AND INFORMATION ON DISSEMINATION
IMPLEMENTATION RESEARCH HAS BEEN
REALLY WELL DOCUMENTED IN
PROGRAM ANNOUNCEMENT NIH HAS HAD
FOR A NUMBER OF YEARS NOW.
I WILL TALK ABOUT NEXT WHAT
IMPLEMENTATION RESEARCH LOOKS
LIKE AND WALKING THROUGH AN
EXAMPLE OF A STUDY DONE IN VA
AND TAKING ADVANTAGE OF THE VA
LEARNING SYSTEM TO REALLY TO
STUDY IMPLEMENTATION OF A NEW
EFFECTIVE TREATMENT.
NEXT SLIDE, PLEASE.
A LITTLE BACKGROUND ON VA
NATION'S LARGEST IMBEDDED
RESEARCH PROGRAM 9 MILLION
VETERANS ENROLLED AND INCLUDING
170 HOSPITALS AND GLOBAL BUDGET
THAT PAYS FOR SALARY PROVIDERS
AND NURSES AND PHYSICIANS AND
PHARMACISTS AND SOCIAL WORKERS
AND PSYCHOLOGISTS AND SO FORTH
AND WE ESSENTIALLY PT AND TYPES
OF REHABILITATION THERAPY AND
PROVIDERS AS WELL INTEGRATED
SYSTEM SOCIAL EDUCATIONAL AND
HOUSING DISABILITY SERVICES
BENEFIT PROZ E- VIEDED IN
ADDITION FOR HEALTH CARE
BENEFITS AND 20 YEARS OF
NATIONAL ELECTRONIC HEALTH CARE
DATA AND DATA FOR RESEARCH
FUNDING ACROSS THE SPECTRUM THAT
MAKES US UNIQUE UNLIKE OTHER
AGENCIES THAT MAY NO THE HAVE
RESEARCH FUNDING WITHOUT HEALTH
SYSTEMS AND RESEARCH FUNDING AND
LITTLE OF BOTH AND NATIONAL
IMPLEMENTATION PROGRAM IS QUERY
THAT IS A PROGRAM THAT IS NOT
ONLY CHARGED WITH FUNDING
IMPLEMENTATION SCIENCE WORK AND
TRAINING OTHERS HOW TO DO
IMPLEMENTATION SCIENCE.
NEXT SLIDE, PLEASE.
GIVING YOU A SNAPSHOT OF CENTERS
OUT THERE FUNDED BY VA RESEARCH
THAT IS ESSENTIALLY VA'S
INTERDISCIPLINARY REHABILITATION
RESEARCH DEVELOPMENT CENTERS
ACROSS THE UNITED STATES AND
THEY FOCUS ON MANY AREAS OF
REHABILITATION RESEARCH. YOU
CAN LOOK THEM UP ON OUR WEBSITE
FOR MORE INFORMATION AND MANY
CENTERS FOCUS ON A COMMON THEME
OF VETERAN DISABILITY AND
FUNCTIONAL IMPROVEMENT AND
CENTERS ARE INTERDISCIPLINARY IN
WAY THAT THEY BRING TOGETHER
HEALTH SERVICES MENTAL RESEARCH
CENTERS AND REHABILITATION AS
WELL AND BRIEF SNAPSHOT WHAT WE
DO IN A WORLD OF REHABILITATION
RESEARCH. NEXT SLIDE.
A COUPLE YEARS AGO WE PUBLISHED
A ROADMAP TO IMPLEMENT SCIENCE
AND DEMYSTIFY IMPLEMENTATION
SCIENCE TO FRONTLINE
PRACTITIONERS AND RESEARCHERS
THAT ARE LESS FAMILIAR WITH
IMPLEMENTATION SCIENCE AND GOAL
IS TO BASICALLY LAY OUT HOW YOU
ACTUALLY DESIGN AND
IMPLEMENTATION PROJECT AND WHAT
QUESTIONS TO ASK AND HOW TO
ENGAGE STAKEHOLDERS UP FRONT AND
IDEA WAS TO BASICALLY HELP
RESEARCHERS AND PRACTITIONERS
DEVELOP A SHARED AGENDA TOGETHER
TO IDENTIFY WHAT PROBLEMS THIS
HE WERE TRYING TO SOLVE AND WHO
WERE EFFECTED COMMUNITIES AND
WHERE BEST PRACTICES OR CURRENT
EVIDENCE-BASED PRACTICES OUT
THERE OR IF THERE WEREN'T
PRACTICES THAT WERE EVIDENCE
BASED WHAT WE NEED TO COLLECT TO
MAKE THEM FEASIBLE TO IMPLEMENT
WHEN THE STUDY WAS DONE AND IDEA
TO DESIGN IMPLEMENTATION OR
DESIGN FOR IMPLEMENTATION HAS
BEEN OUT FOR A WHILE AND GROUP
IN COLORADO IS DOING GREAT WORK
ON THIS ANDEND USERS ANDEND USER
INVOLVEMENT IN INTERVENTION OF
THE DESIGN ITSELF THAT IS
ROBUSTLY DONE IN FIELD OF
REHABILITATION AND IN ADDITION
ASKING QUESTIONS WHAT IT WILL
TAKE TO SUSTAIN THIS TREATMENT
INCLUDING TREATMENT FIDELITY AS
WELL AS COST AND BURDEN ON FROND
LINE PROVIDERS THAT ARE KEY
QUESTIONS TO ASK DURING TIME
THAW ARE DOING A TRIAL OF THIS
NEW INTERVENTION OR TREATMENT
AND END OF THE DAY COME UP WITH
INTERVENTION PLAYBOOK FOR
COMMUNITIES AND SYSTEMS INVOLVED
TO CONTINUE SORT OF WITH THE
TORCH AND CONTINUE THAT
IMPLEMENTATION OF THOSE
INNOVATIONS.
NEXT SLIDE, PLEASE.
ONE EXAMPLE OF A TOOL THAT WE
DEVELOPED IN VA RESEARCH IS
BASED ON COOPERATIVE PROGRAM
THAT IS VA'S NATIONAL CLINICAL
TRIAL MULTI-SITE PROGRAM AND
DESIGN CLINICAL TRIAL
IMPLEMENTATION PLANNING
ASSESSMENT TOOL AND LIKE COREY
ROADMAP IT IS BASED ON LEARNING
HEALTH SYSTEM FRAMEWORK THAT
TAKES YOU AT THE
PREIMPLEMENTATION PHASE THINKING
TO DESIGN CLINICAL TRIAL FOR NEW
DEVICE AND TREATMENT AND SO
FORTH ARE FACTORS TO CONSIDER
MEASURING DURING THE CLINICAL
TRIAL AND FOR EXAMPLE PROVIDER
PATIENT ACCEPTANCE AND
IMPLEMENTATION AND TREATMENT
COSTS AND FIDELITY TO THE
IMPLEMENTATION OF THE TREATMENT
AND ORGANIZATIONAL OR CONTEXTUAL
FACTORS IF DOING MULTI-SITE
TRIAL ACROSS SEVERAL SITES SITES
MIGHT HAVE HIGH ERR RESOURCES
THAN OTHERS AND MEASUREMENT OF
USES OF TREATMENT AFTER THE END
OF THE STUDY ARE ACTUALLY SITES
THAT CONTINUE THAT TREATMENT
OVER TIME AND HOW YOU WOULD
CAPTURE THAT INFORMATION AND
THERE IS A PAPER ABOUT THIS BY
CHRISTINE WHO IS A FIRST AUTHOR
AND PUBLISHED RECENTLY IN
JOURNAL FOR CLINICAL AND
TRANSLATIONAL SCIENCE.
NEXT SLIDE, PLEASE.
ANOTHER EXAMPLE OF RESEARCH
KNOWLEDGE TRANSLATION IN THE VA
HAS BEEN NATIONAL IMPLEMENTATION
OF EFFECTIVE PRACTICES TO
OPTIMIZE VETERAN FUNCTIONING AND
WALKING THROUGH STRUCTURE HOW
THIS CAME ABOUT. WE HAD FUNDED
A FUNCTION QUERY CENTER DEVOTED
TO IMPROVING VETERAN FUNCTIONING
AND QUERY CENTER WAS BASICALLY
COMPRISED OF MULTI-DISCIPLINARY
TEAM OF HEALTH SERVICE
RESEARCHERS AS WELL AS
REHABILITATION RESEARCHERS WHO
CAME TOGETHER IN SUPPORT OF THE
IMPLEMENTATION OF SEVERAL
EVIDENCE-BASED PRACTICES FOCUSED
ON IMPROVING VETERAN FUNCTIONING
AND IN DOING SO USED CHANGE OR
IMPLEMENTATION OR KNOWLEDGE
TRANSLATION STRATEGIES TO
BASICALLY PROMOTE UPTAKE OF
EVIDENCE-BASED PRACTICES. AS A
RESULT AND IN CLOSE PARTNERSHIP
WITH NATIONAL AND CLINICAL
LEADERS AT LOCAL AND NATIONAL
LEVEL, THIS CENTER WAS ABLE TO
PROMOTE UPTAKE OF THREE
EVIDENCE-BASED PRACTICES YOU SEE
IMPACTS HERE WITH FUNCTIONAL
IMPROVEMENT IN 17% OF THE
POPULATION AND GROUP PHYSICAL
THERAPY AND NEOOSTEOARTHRITIS
AND STRIVE WALKING PROGRAM
IMPACTING OVER SEVEN 700
VETERANS TRAINED CLOSE TO 900
PROVIDERS USING EVIDENCE-BASED
PROGRAM AND BASICALLY HAD 2,000
CAREGIVERS TRAINED AND 200VA
PROVIDERS TRAINED. NEXT SLIDE,
PLEASE.
GOAL OF IMPLEMENTATION RESEARCH
IS HOW YOU GET FROM THE
TREATMENT INTO PRACTICE
SUSTAINING IT IS DEFINING
IMPLEMENTATION STRATEGIES TO
SCALE UP EFFECTIVE TREATMENTS
AND WILL TALK ABOUT
IMPLEMENTATION STRATEGIES MORE.
NEXT SLIDE. WHAT THOSE ARE
IMPLEMENTATION STRATEGIES
LANDMARK PAPER IS JEFF'S PAPER
ON HYBRID EFFECTIVENESS DESIGNS
THAT IS A KEY PAPER
UNDERSTANDING WHAT
IMPLEMENTATION STUDY TO DESIGN
AND HOW THEY GET DESIGNED AND
WHAT THEY LOOK LIKE.
THINKING ABOUT IT, THERE IS A
SPECTRUM OF DIFFERENT TYPES OF
HYBRID DESIGNS AND ON LEFT IS
CLINICAL EFFECTIVENESS DESIGNS
HYBRID TYPE 1 IS TYPICAL
CLINICAL EFFECTIVENESS STUDY AND
IN THOSE STUDIES TYPICALLY
RESEARCHER PAYS FOR THE STAFF
AND THEY ARE ACTUALLY PAID ON
THE GRANT TO DELIVER THE
INTERVENTION AND MAIN GOAL IS TO
BASICALLY TEST IS THE
INTERVENTION EFFECTIVE AND DOES
IT IMPROVE PATIENT OUTCOMES AT
SAME TIME BASED ON
IMPLEMENTATION PLANNING
ASSESSMENT TOOL YOU WANT TO
MEASURE IMPACTS OF THOSE OR THAT
TREATMENT ON PATIENT PROVIDER
AND SYSTEM AND BASICALLY LOOKING
AT OBSERVATION DATA COLLECTION
OF ACTUAL IMPLEMENTATION
PROCESS.
ON THE FAR RIGHT, YOU HAVE
HYBRID TYPE 3 THAT ARE TESTING
DIFFERENT IMPLEMENTATION
STRATEGIES THAT ARE TOOLS OR
METHODS USED TO PROMOTE UPTAKE
OF EVIDENCE-BASED PRACTICE BY
EXISTING PROVIDERS IN THESE
STUDIES HYBRID TYPE 3S ARE OFTEN
ALMOST ALWAYS ESSENTIALLY DONE
BY EXISTING PROVIDERS WHO ARE
IMPLEMENTING YOUR EVIDENCE-BASED
PRACTICE AND YOU USE DIFFERENT
STRATEGIES TO TRAIN THEM TO
BASICALLY REMIND THEM TO USE
EVIDENCE-BASED PRACTICE TO
PROMOTE SELF-EFFICACY OF
PROVIDERS USING EVIDENCE-BASED
PRACTICE AND SO FORTH AND
STUDIES ARE IMPORTANT BECAUSE
COMMUNITY PARTNERS LOVE THESE
STUDIES AND SITES GET ACCESS TO
EFFECTIVE TREATMENT AND YOU
STUDY DIFFERENT LEVELS INTENSITY
OF SUPPORT YOU GIVE TO FRONTLINE
PROVIDERS IN IMPLEMENTING THAT
TREATMENT AND QUESTION IS A
SYSTEM-LEVEL QUESTION AND HYBRID
TYPE 2S ARE PILOT TYPE VERSIONS
OF HYBRID TYPE 3S AND AT THAT
POINT YOU ARE TRANSITIONING FROM
A MODEL WHERE YOU PAID FOR
INTERVENTIONIST TO DELIVER YOUR
TREATMENT AND YOU TAKE A STEP
BACK AND ARE WANTING TO REALLY
BE ABLE TO TRAIN EXISTING
PROVIDERS TO DELIVER THAT
TREATMENT AND HYBRID TYPE 2 IS A
PERFECT DESIGN FOR THAT. YOU
ARE MEASURING STILL OUTCOMES OF
THE TREATMENT AND SAME TIME YOU
ARE MEASURING BEST WAYS OF
IMPLEMENTING THAT TREATMENT BY
TEST
TESTING DIFFERENT STRATEGIES AS
WELL. NEXT SLIDE, PLEASE. WHAT
WE ARE SAYING ABOUT
IMPLEMENTATION STRATEGIES IS
ESSENTIAL TOOLS GO OVER
TRANSLATION BARRIERS. EFFECTIVE
TREATMENTS AND IMPLEMENTATION
STRATEGIES MITIGATE BARRIERS TO
CARE AND HIGHLY SPECIFIED THEORY
BASED METHODS HELPING PROVIDERS
IMPLEMENT TREATMENTS AND
PROVIDER CHANGE MAINLY IN
CONTEXT OF MITIGATION AND
CONSTRAINTS AND IMPLEMENTATION
IS NECESSARY BECAUSE WE DON'T
HAVE LUXURY HIRING NEW PROVIDERS
TO IMPLEMENT EVERY NEW TREATMENT
OUT THERE AND HAVE TO INVOLVE
EXISTING PROVIDERS AND NEED
STRATEGIES TO HELP EXISTING
PROVIDERS LIKE IF YOU ARE LET'S
SAY TESTING COGNITIVE BEHAVIORAL
THERAPY FOR PATIENTS AND
STRATEGIES ARE PROTOCOLIZED AND
MANUAL TO DELIVER STRATEGY AND
WILL TALK ABOUT EXAMPLES IN THE
NEXT SLIDE. NEXT SLIDE, PLEASE.
KEY EXAMPLES OF IMPLEMENTATION
STRATEGIES ARE GROUPED INTO TWO
TYPES OF IMPLEMENTATION
STRATEGIES AND FIRST ONES YOU
ARE ESSENTIALLY PUSHING
EVIDENCE-BASED TREATMENT INTO
THE WORLD THAT ARE TRANSACTIONAL
STRA I JIS AND FOCUS ON PROCESS
DRIVEN CHANGES AAND SYSTEM LEVEL
INCENTIVES AND AUDIT AND
FEEDBACK IN HEALTH SYSTEM
SENDING OUT CLINICAL REMINDER
AUDIT PROVIDERS MAKING SURE THEY
USE RIGHT TREATMENT AND --
IMPLEMENTATION STRATEGY AND
PROVIDER TRAINING IS CLASSIC
IMPLEMENTATION STRATEGY AND
INCENTIVES HEALTH SYSTEM
PROVIDES MORE DELIVERING BETTER
QUALITY OF CARE IN CERTAIN WAYS
AND STRATEGIES PULL OR ENCOURAGE
PROVIDERS INTRINSIC MOTIVATION
TO USE EVIDENCE-BASED TREATMENT
OR PRAKIS INCLUDE RELATIONSHIP
CHANGES COMMUNITY ENGAGEMENT
GETTING PARTNERS INVOLVED TO
WORK WITH PROVIDERS AND CLINICAL
CHAMPIONS IN PRACTICE TO SUPPORT
EVIDENCE-BASED TREATMENT AND
USING FACILITATION THAT IS
GUIDANCE AND STRATEGIC THINK TO
FRONTLINE PROVIDERS FOCUSING ON
TRANSFORMATIONAL STRATEGIES
BEHAVIOR CHANGE IS TOUGH ENOUGH
AS AN INDIVIDUAL AND INTRODUCING
A NEW TREATMENT AND YOU SAY WHY
CAN'T PROVIDERS USE NEW
TREATMENT OR PRACTICE?
IF YOU EVER HAVE HAD KIDS OR
ANYTHING IT IS HARD TO TELL
PEOPLE WHAT TO DO SOMETIME AND
NO. 2 ISSUE WHY THIS IS
IMPORTANT AREA OF RESEARCH IS
WHEN YOU HAVE NEW INNOVATION YOU
ARE COMPETING ALWAYS AGAINST
IDEALIZED VERSION WHAT IT IS
TRYING TO PLACE AND ESSENCE
INNOVATION AND CHANGE WILL HIT
WITH RESISTANCE THAT IS WAY OF
LIFE AND YOU NEED STRATEGIES TO
OVERCOME THAT RESISTANCE.
SOME EXAMPLES OF IMPLEMENTATION
OUTCOMES I WILL BE QUICK FOR
SAKE OF TIME IS REAIM FRAMEWORK
THAT IS WONDERFUL FOR DESIGNING
HOW TO DESIGN IMPACT OF
IMPLEMENTATION AND POINTING OUT
FIRST TWO IN PARTICULAR. THESE
ARE OFTEN USED WHAT I WOULD CALL
AN IMPLEMENTATION TRIAL WHERE
YOU TEST DIFFERENT
IMPLEMENTATION STRATEGIES AND WE
BASICALLY OFTEN SEE STUDIES THAT
ARE REALLY POWERED TO LOOK AT
DIFFERENCES OF HOW MANY PEOPLE
GOT THE TREATMENT AND HOW MANY
DIFFERENT.
QUESTION IS LESS ABOUT DOES
TREATMENT WORK OR HOW TO GET
TREATMENT SUSTAINABLE -- HOW
MANY PATIENTS ARE RECEIVING THE
TREATMENT AND HOW MANY ARE NOT?
THAT IS AN EXAMPLE AND GOING
FURTHER ON THESE REAIM.ORG THERE
IS MEASURES HOW THEY ARE
IMPLEMENTIZED AND WASHGING
THROUGH HYBRID TYPE 3
IMPLEMENTATION STRATEGY
COMPARING DIFFERENT
IMPLEMENTATION STRATEGIES FOR AN
EFFECTIVE PROGRAM THAT WAS
PUBLISHED WAS REENGAGE THAT IS A
BRIEF CARE MANAGEMENT PROGRAM
DESIGNED TO TRAIN PROVIDERS TO
FOLLOW UP ON VETERANS LOST TO
CARE FOR AT LEAST A YEAR WHO HAD
A SERIOUS MENTAL ILLNESS S
DIAGNOSE YIGS AND WAS A PROGRAM
DESIGNED TO HELP VETERANS ONE
DROPPED OUT OF SERVICES AND ONE
INTO CARE. NEXT SLIDE, PLEASE.
PROGRAM COMPONENTS BASED ON
COLLABORATIVE CARE MODEL BY
WAGNER THAT FOCUSED ON LOCAL
MENTAL HEALTH PROVIDERS.
AND PROVIDING INFORMATION ABOUT
THEIR WHEREABOUTS.
AND PROVIDERS THEMSELVES
ATTEMPTED TO CONTACT A VETERAN
TO ASSESS CLINICAL STATUS AND
CONTACTING THEM SICK CRESSFULLY
WRAPPING INTO RIGHT SERVICES ALL
WAS DOCUMENTED NEXT HR AND
IMPLEMENTED NATIONALLY ACROSS VA
AND ALL HOSPITALS IMPLEMENTATION
STRATEGIES INCLUDING EFFECTIVE
PROGRAMS ENHANCED VERSION OF
PROGRAMS THAT ADDED FACILITATION
IMPLEMENTATION STRATEGY AND REP
IS IMPLEMENTATION STRATEGY AND
LARGER FRAMEWORK TO IMPLEMENT
INCLUDING IMPLEMENTATION
INTERVENTIONS FOCUSED ON
IDENTIFYING A PROBLEM WORKING
WITH COMMUNITY MEMBERS AND
PACKAGING AND LAY LANGUAGE CARE
MANAGEMENT MANUAL AND LAID
LANGUAGE PROVIDERS PROVIDING
TRAINING AND TECHNICAL
ASSISTANCE AND BASIC
IMPLEMENTATION STRATEGY AND
PACKAGED IN MANUAL AND PROVIDED
TRAINING TO PROVIDERS AND WE
TESTED IMPACT OF ADDED
FACILITATION THAT IS COSTLY AND
INVOLVED HAVING LOCAL ACTUALLY
LOCAL QUALITY EXPERTS CONTACT
PROVIDERS TO HELP THEM IMPLEMENT
PROGRAM IN RUT TEEN CLINICAL
CARE SETTINGS.
NEXT SLIDE. DIFFERING ADDING
FACILITATION FRONTLINERS NOT
ONLY GOT PACKAGE TOOLKIT OF
EVIDENCE-BASED PACKAGE BRIEF
CARE MANAGEMENT PROGRAM AND THEY
GOT TRAINING AND RANDOMIZED TO
GETTING ENHANCED RAP YOU WOULD
GET REGULAR AND ZOOM CALLS WITH
IMPLEMENTATION EXPERT WHERE THEY
WOULD GO OVER THE POTENTIAL
BARRIERS FOR FRONTLINE PROVIDERS
WERE EXPERIENCING AND
IMPLEMENTING REENGAGING HELPING
THEM BUILD COALITIONS FINDING
PROVIDERS TO HELP IMPLEMENTATION
GAUGE AND ROAD BLOCKS TO ASSESS
CLINICAL STA THES OF VETERANS
AND VETERANS WERE LOST TO FOLLOW
UP THEY WERE EXPERIENCING
HOMELESSNESS AND WORKING WITH
THE HOMELESSNESS PROGRAM OFFICE
AND THING LOOZIC THAT
ENCOURAGING FRONTLINE PROVIDERS
TO SHOWCASE HOW PROGRAM WAS
BENEFICIAL TO VETERANS DOG RAPID
CYCLE TESTING COLLECTING PILOT
DATA TO ACTUALLY PRESENT THAT TO
THEIR LEADERSHIP TO SHOW THE
VALUE OF THE PROGRAM OVERALL.
NEXT SLIDE, PLEASE.
THIS WAS THE DESIGN AND WAS
CALLED ADAPTIVE IMPLEMENTATION
DESIGN. WHAT WE DID WAS FIRST
WE RANDOMIZED SITES THAT
INITIALLY THAT WE CALL
NONRESPONDERS OR ARE NOT DOING
MUCH IMPLEMENTATION ENGAGE BASED
ON INITIAL ROLLOUT OF TRAINING
AND PROGRAM PACKAGE AND OF SITES
OF 89 SITES THAT ARE CONSIDERED
LOW UPTAKE WE RANDOMIZE THEM TO
ENHANCED REP AND PROVIDERS THERE
GOT ADDED FACILITATION AND AFTER
6 MONTHS LOW RESPONSE SITES THAT
DIDN'T GET RANDOMIZED INITIALLY
ENDED UP TO ENHANCED RAP OVER
TIME AND NEXT SLIDE. CLICKING
HERE REAL QUICK AND RESULTS WERE
INTERESTING WE SHOWED A
DIFFERENCE AND LOOKED AT THE
UPTAKE OF THE PROGRAM. AFTER 6
MONTHS YOU CAN KEEP CLICKING
THROUGH.
DURING BASICALLY IN PHASE 1 WE
SAW A DIFFERENCE THAT KICKED IN
AFTER THREE MONTHS AND PHASE 2
EVERYONE ALL LOW PERFORMING
SITES GOT ACCESS TO FACILITATION
AND LOW PERFORMING SITES GOT
CAUGHT UP WITH THE SITES
IMPROVING FROM 50% UPTAKE OF THE
PROGRAM THAT IS NATIONALLY
ACROSS 89 HOSPITALS AND COST WAS
FAIRLY COST EFFICIENT 8 HOURS
PER SITE AND DOSED ENHANCED REP
FACILITATION.
NEXT SLIDE, PLEASE.
LESSONS LEARNED WAS A NATIONAL
PRAGMATIC IMPLEMENTATION TRIAL
THAT WE LEARNED THAT IT WAS KEY
THAT VA LEADERSHIP SOUGHT OUT
RESEARCHERS TO HELP THEM
IMPLEMENT REENGAGED CARE PROGRAM
AND WE HAD MOTIVATION FROM
LEADERSHIP NATIONALLY AND WAS
KEY AND OBVIOUSLY VERY IMPORTANT
AND SAME TIME THOUGH WE
ENCOURAGED THEM TO DO ADAPTIVE
DESIGN. THEY WANTED TO ROLL OUT
EVERYTHING TO EVERYONE AND
WANTED TO TEST IF ADDED COST OF
FACILITATION MADE A DIFFERENCE
IN PROVIDER UPTAKE AND THEY
AGREED TO ADAPTIVE DESIGN AND WE
ESSENTIALLY HAVE TRIAL DESIGN
ABLE TO ANSWER QUESTION DOES
FACILITATION THAT IS MORE
EXPENSIVE AND DOES IT MATTER AND
EVERYONE ALL OF THE SITES
EVENTUALLY GOT SUPPORT IN
IMPLEMENTATION REENGAGE AND IS A
WIN/WIN FOR THEM ESSENTIALLY AND
WE MADE IT A POINT TO HAVE LOCAL
ENGAGEMENT AND TO HAVE LOCAL
CONTACT WITH FRONTLINE PROVIDERS
TO MAKE SURE WE WEREN'T MISSING
SORT OF ISSUES OR RESISTANCE IF
IN THE FIELD AND MAKE SURE
VOICES WERE HEARD PLANNING
FACILITATION PROGRAM. LOTS OF
FACILITATION WAS DESIGNED BY
FRONTLINE PROVIDERS IN THE
FIELD.
WE USED DHR FOR PRAGMATIC
OUTCOMES AND WERE ABLE TO
THANKFULLY BEING WITH VA
NATIONAL ELECTRONIC HEALTH
SYSTEM ABLE TO CLEBLTH
INFORMATION ON PROGRAM UPTAKE
AND PATIENT CLINICAL STATUS AND
END OF THE DAY NATIONAL PROGRAM
IN VA AND OFFICE OF MENTAL
HEALTH AGREED TO KEEP
PROMULGATING REENGAGED PROGRAM
OVER TIME BASED ON RESULTS OF
STUDY PAYING FOR FACILITATOR TO
GO WITH CARE AND FEEDING OF THE
PROGRAM AS WELL.
NEXT SLIDE, PLEASE.
I THINK THAT IS IT. I WANT TO
THANK COLLEAGUES AND APPRECIATE
IT AND WILL STOP HERE FOR
QUESTIONS.
THANK YOU.
>> THANK YOU, AMY. DO WE HAVE
QUESTIONS SPECIFICALLY FOR AMY?
IF NOT GOING TO GROUP
QUESTIONS.
>> THANK YOU TO ALL 3 PRESENTER
AND FANTASTIC PRESENTATION AND
KWI I HAVE THAT COULD BE
ANSWERED BY ANY THREE OF YOU
THAT IS CONSIDERING REALITIES ON
GROUND AND IN DIFFERENT CLINICAL
SETTINGS DO YOU THINK THERE
WOULD BE BETTER IMPLEMENTATION
IF RESEARCH DESIGN TAKES INTO
ITSELF CONSIDERATION STANDARD OF
PRACTICE AROUND CLINICS
SPECIFICALLY WITH RESPECT TO
AMOUNT OF TIME ALLOCATED TO THE
INTERVENTION AND REIMBURSEMENT
BY INSURANCE?
>> CAN THE SPEAKERS COME ON
CAMERA SO WE CAN SEE YOU?
>> I WILL TAKE THAT. I THINK
THAT IT IS EXTREMELY IMPORTANT
TO UNDERSTAND CONTEXT FOR WHICH
-- IN WHICH YOU WISH THE
INTERVENTION TO OCCUR. IF WE
DON'T UNDERSTAND THE FULL
CONTEXT WITH POTENTIAL
APPLICATION WHATTEND USERS AND
BARRIERS TO FACILITATORS ARE AND
DEVELOP TO HAVE INTERVENTION
THAT WILL ADEQUATELY MATCH THEIR
NEEDS AND DON'T KNOW IF OTHERS
WANT TO ADD ON.
THIS IS AMY AND GREAT QUESTION
TO SEE PRAGMATIC TRIALS ENABLING
MORE PRACTICAL SOLUTIONS TO BE
TESTED AND WITH THE INPUT FROM
NOT JUST HEALTH SYSTEM LEADERS
AND COMMUNITY PARTNERS AND
PATIENTS THEMSELVES.
OFTEN TIMES WE HAVE TIGHTLY
CONTROLLED RANDOMIZED TRIALS OF
IDEALIZED TREATMENTS THAT IS
GREAT AND YOU HAVE TO START
SOMEWHERE AND LINDA YOU TALKED
ABOUT INNOVATION BEING KEY AND
OFTEN TIMES WE ARE AFRAID TO
TAKING LEAP TO DO PRAGMATIC
TRIALS THAT IT MIGHT BE MESSIER
AND NOT JUST MESSINESS BUT
ACCOUNTING FOR DIVERSITY AND
HETEROGENEITY AND EMBRACING THAT
AND PRIMARY OUTCOMES THAT ARE
REALISTIC AND REAIM TO MODEL FOR
THAT. THANKS.
>> THANK YOU FOR THAT WONDERFUL
PRESENTATION AND I HAD A
QUESTION. ONE FOR DR. CAI.
WHEN TALKING ABOUT ALL OF THE
PROGRAMS THAT WERE AVAILABLE I
WAS CURIOUS AS A PHD RESEARCHER
WHO DOESN'T KNOW MUCH ABOUT
IMPLEMENTATION SCIENCE, WHAT
WOULD BE YOUR ADVICE IN TERMS
WHERE TO BEGIN? I HAVE DONE
WORK IN LOW AND MIDDLE INCOME
COUNTRIES AND FOUND I DO
USABILITY PART AND USABILITY
ASSESSMENT OF TECHNOLOGY I WANT
TO GO FURTHER TO SEE PRACTICAL
IMPLEMENTATION AND WANT ADVICE
AND WHERE DO I BEGIN AND HOW DO
WE DO WITH WHAT YOU ARE TALKING
ABOUT WITH THE TECHNOLOGY IN THE
MIX?
>> THANKS SO MUCH FOR THAT
QUESTION. I REALLY APPRECIATE
YOUR DESIRE TO LEARN ABOUT
IMPLEMENTATION SCIENCE AND
KNOWLEDGE TRANSLATION AND OTHER
RESOURCES THAT ARE PRESENTED
PROVIDED BY THE KNOWLEDGE
TRANSLATION CENTERS OF NIDLR. I
THINK THOSE RESOURCES ON THE
WEBSITE THEY ARE AFRAID FOR YOU
TO LOOK AT AND USE THEM.
AND THEN THE -- NIDLR FUNDED KT
CENTERS AND TECHNICAL
ASSISTANCE, I BELIEVE, IT WOULD
BE FOR [INDISCERNIBLE].
SO, BUT THE RESOURCES WILL BE
AVAILA
AVAILABLE.
FOR EXAMPLE, THERE IS A KT
STRATEGY DATA BASE AND IS A GOOD
STARTING POINT. ALSO, THE KTDR
THAT IS KNOWLEDGE TRANSLATION
CENTER FOR THE KNOWLEDGE
TRANSLATION CENTER FUNDED BY
NIDLR THAT HAS A CASE BOOK AND
LEARNING EXAMPLES HOW -- STUDIES
HAVE IMPLEMENTED KNOWLEDGE
TRANSLATION AND PRINCIPLES WERE
APPLIED PRINCIPLES THAT WERE
IMPLEMENTATION SCIENCE THAT
COULD BE GOOD RESOURCES TO START
TO LEARN AS WELL.
>> SORRY DIDN'T GET SECOND ONE.
KT WHAT?
>> KT CASE BOOK THAT IS ON K
KTD.ORG WEBSITE.
>> THANK YOU.
>> IMPLEMENTATION SCIENCE THAT
HAS LIST OF THEM UNDER
IMPLEMENTATION TRAINING MATRIX.
IT IS ON THE WEBSITE.
>> LOOKING AT KNOWLEDGE
TRANSLATION TOOLKIT AND TOOLS
THAT COURSES ARE FREE TO YOU.
>> HI. THANKS FOR YOUR TALK.
THEY ARE WONDERFUL AND QUESTION
AND SEEING IF YOU CAN COMMENT
ABOUT HOW WE DEFINE WHAT A
HEALTH SERVICES IS AND TALKING
ABOUT STAKEHOLDERS BROADLY THERE
IS MISUNDERSTANDING ABOUT
VARIOUS PUSHES AND PULLS ACTING
ON HEALTH SERVICE SYSTEM THAT WE
ARE SOMETIMES NO THE AWARE OF
STARTING FROM -- ANY SYSTEM BIG
OR SMALL IT COULD BE COMMUNITY
HEALTH CLINIC AND AS BIG AS
INTEGRATED HEALTH SYSTEM.
EXAMPLE THAT WE HEARD THAT IS
IMPRESSIVE BECAUSE IT IS MANY,
MANY HOSPITALS AND SYSTEMS AND
IF -- IF THE INTERVENTION OR THE
PRACTICE IS GOING TO BE USED AT
A SMALL LOCAL LEVEL OR PRACTICE
AT A SMALL COMMUNITY CLINIC IS
APPROPRIATE FOR TESTING AND
DON'T THINK SIZE IS A FACTOR.
>> IN LEARNING DEVELOPMENTS THAT
CHUCK DEVELOPED FORM A LEARNING
COMMUNITY FIRST AND THAT IS WHAT
LINDA WAS TALKING ABOUT, A GROUP
OF PEOPLE WITH A SHARED GOAL AND
GOVERNANCE STRUCTURES OF SOME
SORT AND DATA THEY CAN USE TO
IMPROVE CARE ACTUALLY.
>> HELLO, EVERYONE. I
APPRECIATED THE SET OF TALKS AND
HAVE A QUESTION THAT GOES BACK
TO THE PREVIOUS QUESTIONS A
LITTLE BIT AND AT GEORGIA TECH
WE HAVE BEEN TRYING TO WRESTLE
WITH TRYING TO UNDERSTAND HOW TO
BRING COMMUNITY TRANSLATION TO
LOTS OF RESEARCH EVERIES GOING
ON AND WHAT IS UNIQUE AND HAS
BEEN CHALLENGE FOR ACADEMIC
INSTITUTIONS WITHOUT AFFILIATED
CENT EVERIES AND NETWORKS AND
BASIC SCIENCE RESEARCH AND
UNDERSTANDING HOW TO TRANSLATE
CONCEPTS OF CLINICAL OR HEALTH
SYSTEMS BASED IMPLEMENTATION
MODELS AND SCIENCE-BASED
INSTITUTIONS AS WELL AND WOULD
LOVE TO GET THOUGHTS HOW TO
COMMUNICATE THE CONCEPTS THAT
ARE BEING LEARNED IN CLINI
CLINICALCLINICAL
SETTINGS INTO OTHER TYPES OF
SPA
SPACES.
>> ANY TAKER SNZ.
>> THIS IS ANNIE. ONE IDEA
COMING TO MIND LEARNING A LOT
FROM CTSAS AND CTSIS THAT HAVE A
WONDERFUL PROGRAM THE COMMUNITY
RESEARCH STUDIO THAT IS A ROBUST
WAY OF ENCAPSULATING USER CENTER
DESIGN WITH A COMMUNITY TO
IDENTIFY RESEARCH PROBLEM OF
INTEREST AND PATHWAYS TO EXPLORE
AND STUDY THAT IS A POTENTIAL
EXAMPLE AND ANOTHER EXAMPLE IS
WORK OUT OF AIR AND LION AND
ERIC AND AARON IS AT UNIVERSITY
OF WASHINGTON DOING USER CENTER
DESIGN AND TECHNOLOGY AND
CONSUMERS DESIGNING BETTER WAYS
TO DELIVER MAINLY PSYCHOSOCIAL
INTERVENTIONS AND APPLYING TO
DIFFERENT TREATMENTS AS WELL AND
DONE A LOT IN EDUCATION SETTINGS
AND IN CLINICS.
>> I THINK GREAT JOB TALKING
ABOUT PROMOTING STUDIES AND
IMPLEMENTATION AND
EMMRIMENTATION SCIENCE AND
SHOULD BE REQUIRED READING FOR
LOTS OF RESEARCHERS AND THINK
ABOUT PRESSURE POINTS AND FOR
EXAMPLE IN PEER REVIEW I THINK
NIDLR IS AHEAD OF US EMPHASIZING
THAT NIH PANELS DON'T GIVE
PEOPLE CREDIT FOR WORK THEY ARE
DOING AND NECESSARY REQUIREMENT
FOR HAVING THIS IN THEIR
PROPOSALS AND WOULD BE NICE IF
NIH PEER REVIEW PANELS WISED UP
AND JOURNALS ARE COMING AROUND
AND REALLY HIGHLIGHTING
IMPLEMENTATION OF THE STUDIES
AND THINK ABOUT ACADEMIC
ADVANCEMENT AND DON'T THINK THAT
DEPARTMENTS REALLY GIVE PEOPLE
CREDIT FOR WORK THEY DO AND
DON'T PROVIDE RESOURCES TO
SUPPORT RESEARCHERS TO TAKE TIME
OREGON INCORPORATE USER
EXPERIENCE ANDAC DIVISION WORK
YOU DIDN'T MENTION AND CMS AND
RESEARCH REIMBURSED AND
IMPLEMENTING CMS DECISIONS TO
GET THEM TO VALUE IT AND
REIMBURSE MORE WORK AND PUTTING
IT ALSO INTO PRACTICE.
>> CAN'T SAY EXPERT ON THAT
TRANSLATION TO FUND AVAILABILITY
AND WOULD SAY WHEN PI OF STUDIES
TO OPTIMIZE ARM AND ONE THING WE
DID WAS DISCUSS WITH SUSAN
MILLER FROM CMS ABOUT CODING OF
PROSTHETIC DEVICE AND WHETHER OR
NOT AND HOW IT WOULD BE ASSIGNED
A CODE AND WHAT DATA CMS WOULD
NEED TO HAVE FROM A STUDY TO
MAKE OR CONSIDER TECHNOLOGY
MEDICALLY USEFUL AND CHOSE
OUTCOMES WE THOUGHT WOULD BE
MEANINGFUL TO CMS DESIGNING
OUTCOME MEASURE WE THOUGHT WOULD
HAVE TO CMS WE WANTED TO PROVIDE
DATA THAT THEY WOULD WANT IN
TERMS OF POLICY DECISION MAKING.
>> ONE FINAL QUESTION, KARL.
>> THANK YOU. EXCELLENT TALKS
AND NEAR AND DEAR TO MY HEART IN
DOD AND WE ARE FOCUSED ON
RESEARCH TRANSITIONING AND FUND
RESEARCH BY PUBLICATIONS AND
TRANSITION AGREEMENTS AND IDEA
THAT THEY WILL TAKE THIS TO THE
NEXT LEVEL THAT IS A CHALLENGE
AND EXTERNAL PARTY HERE AND
QUESTION IS HOW DO YOU
PRIORITIZE AND FUND THIS IF YOU
WANT IT TO HAPPEN? SUCCESS
JUDGED ON NUMBER OF PUBLICATIONS
NOT HOW YOU INCENTIVIZE BUILDING
TRANSLATION INTO RESEARCH AND IF
NOT WHAT YOU ARE JUDGED ON NOT
AN INCENTIVE TO DO THAT.
HONESTLY PROPOSALS COME TO US
GOING THROUGH NIH STYLE REVIEW.
THOSE THAT HAVE COLLABORATIVE
PROCESS BUILT INTO IT DON'T HAVE
SCORES AND ARE UNKNOWNS IN
STUDIES AND ITERATIVE PROCESS IN
THAT IS NOT SCORED AND PRIORITY
TO BE BUILT IN SCORING CRITERIA
AND WHAT NEEDS TO BE DONE WITH
ACTUAL PRODUCT AT END OF IT.
DON'T KNOW IF SOLUTION HERE BUT
ECHOING TRANSLATION HERE AND
DEPARTMENT OF DEFENSE IS NOT
TOLERANCE FOR 17 YEARS AND WE
ARE NOT DOING BETTER THAN THAT
BUT GET BEAT UP FOR IT AND ARE
NOT GETTING PRODUCTS OUT THERE
TO THE FIELD ANY FASTER.
IT IS A GREAT AND IMPORTANT
TOPIC AND THANKS FOR BRINGING IT
UP.
>> QUICK COMMENT THAT IF WE ADD
TRANSLATION TO, YOU KNOW, WHICH
IS A GREAT IDEA TO OUR CURRENT
INTERVENTION STO STUDIES THAT
REQUIRE MORE RESOURCES WHAT I'M
WORRIED ABOUT HEARING THIS IS
ADDING MORE FOR SAME BUDGET THAT
I DON'T THINK IS POSSIBLE.
>> VERY MUCH SO WE WILL HAVE AS
WELL WITH IMPLEMENTATION SCIENCE
STUDIES BUT ARE NOT REALLY THAT
WE HAVE TRANSITION AGREEMENTS
AND TRANSITION PARTNERS AS WELL
AND NEED TO DO A TRANSLATE
IMPLEMENTATION STUDY AND NEED
FUNDING FOR IMPLEMENTATION AND
NEED TO BE CAREFUL WITH THAT
DONE AND PLANNED IMPLEMENTATION
SCIENCE AND IMPLEMENTATION
FUNDING FOR IMPLEMENTATION AND
CAN'T DO IMPLEMENTATION SCIENCE
IF NO IMPLEMENT ACHES AND IS
GRAY SPACE.
YOU DON'T HAVE FUNDING FOR
ACTUAL IMPLEMENTATION WITH
TRANSITION OR PARTNER AND YOU
ARE STUFF AND IN SAME BOAT
FUNDING BASIC RESEARCH AND
DEPENDENT ON PARTNER SAYING THEY
WILL IMPLEMENT IT TO DO IT AND
DIVERTING RESEARCH TO GO TOWARDS
BASIC RESEARCH TO SEE THROUGH
AND HOPE SOMEONE FIBBINGS IT UP.
THIS IS NOT A GREAT STRATEGY.
>> GREAT. GOOD WAY TO END.
LINDA AND CINDY AND AMY, THANK
YOU. TERRIFIC TALKS AND GREAT
DISCUSSION HERE.
>> THANK YOU.
>> I WANTED TO TAKE DETOUR AND
MAY MEETING BOARD MEMBERS
FINISHING TERMS AND REGRET THEM
HAVING TO LEAVE US AND WILL GIVE
THEM TIME TO MAKE REMARKS ONE
HAPPENS TO HAVE TO LEAVE A
LITTLE EARLY AND GIVING ABBY
TIME TO MAKE REMARKS NOW AND
GOING TO DR. BIANCHI WHO SERVED
FOUR YEARS HERE AND GREAT
PARTNER AND APPRECIATED MULTIPLE
VIEWPOINTS AND COMMENTS HE MADE
I WANT TO GIVE HIM A CHANCE FOR
REMARKS AND STAYING ON THE
COUNCIL.
>> WANT TO SAY BIG THANK YOU TO
THE BOARD.
MEETING DR. [INDISCERNIBLE]
SOMETIME AFTER I STARTED MY
TENURE AND DEAN.
>> HE GAVE AN ENLIGHTENING TALK
HOW THINGS WORK AT N ICHLT IH A
R1 INSTITUTION TOTAL RESEARCH
PORTFOLIO OF THE SCHOOL WAS $2.5
MILLION.
I WANTED TO GROW WAS RESEARCH
AND BRINGING IN HIM WAS REALLY
VERY IMPORTANT.
I'M PROUD TO SAY AFTER 6 YEARS
WE IMPROVED $26 MILLION AND THAT
IS IMPRESSIVE AND AS A RESULT OF
SERVING ON BOARDS LIKE THESE AND
GETTING TO UNDERSTAND WHAT IS
THOUGHT PROCESS BEHIND
[INDISCERNIBLE] AND HOW PROGRAMS
GET FUNDED AND WA ARE CASES AND
I LEARNED AND WOULD LIKE TO
SHARE WITH EVERYONE HOW MUCH WE
SHOULD INVEST IF IN
DEVELOPMENTAL TRAINING OF
FACULTY MEMBERS AND IS IMPORTANT
AND SOMETIMES [INDISCERNIBLE]
WERE TALKING THIS MORNING AND
PEOPLE ARE TWO HANDS OF THE
SPECTRUM.
THOSE INTERESTED IN
INTERVENTIONS AND TREATMENT AND
EVERYTHING AND DON'T KNOW HOW TO
WRITE RESEARCH QUESTIONS AND
SYSTEMATICALLY ADDRESS THE
PROBLEM AND ON RESEARCH SIDE WHO
ARE VERY SYSTEMATIC AND BASIC OR
DON'T HAVE IDEA HOW IT GETS
IMPLEMENTED OR TREATMENT AND ONE
THING WE TRY TO BUILD THAT I
ENCOURAGE TO CONSIDER IS HOW TO
DEVELOP THAT HYBRID PERSON WHO
SHIFTS A BEAT FROM JUST
TREATMENT AND BASIC TO THE
MIDDLE WHERE THEY UNDERSTAND A
GOOD AMOUNT OF BOTH SIDES SUCH
THAT GOOD QUESTIONS CAN COME OUT
AND BE TRANSLATED TO PRACTICE.
ULTIMATELY, REASON WE ARE DOING
THIS IS WE WANT TO IMPROVE
PRACTICE AND HEALTH CARE AND ASK
OURSELVES HOW WELL ARE WE DOING
THAT?
PRESENTATION FROM MY CLOOEG
STEPHANIE DELUCA YESTERDAY, I
WAS IMPRESSED SHE IS STILL
LOOKING AT CONSTRAINT INDUCED
MOVEMENT THERAPY THAT HAS BEEN
AROUND FOR A WHILE.
HOW MANY INSTITUTIONS IMPLEMENT
IT?
EVERYBODY READS IT AND NOT VERY
MANY INSTITUTIONS IMPLEMENT IT
BECAUSE THERE IS NO SUSTAINED
RESEARCH REMINDING OF EFFICACY
OF SYSTEM AND ONE THING WE CAN
LOOK AT THAT COULD BE INTERESTED
WITH NIH AND GLAD THAT DR.
BIANCHI IS HERE TO LET REVIEWERS
SOMETIMES KNOW THAT IF A TOPIC
HAS BEEN INVESTIGATED BEFORE AND
NOT AWARE OF PROVIDING EVIDENCE
OF ADDITIONAL EFFICACY IS MUSH
REDUN DANCE AND DOESN'T HAVE TO
BE SOMETHING NEW ALL THE TIME
AND INNOVATION IS MISCONSTRUED
AND LOOKING FOR [INDISCERNIBLE]
AND NEW THINGS WHERE DO WE DRIVE
HOME WHEN WE START AND THAT IS
THE ISSUE THIS IS CRITICAL TO
LOOK AT AND RESEARCHERS ARE
FRUSTRATED ABOUT I THAT AND
REVIEWERS ASK FOR WHAT IS
ENTIRELY NEW ABOUT THIS AND
STARTED THIS BEFORE AND READ
THIS BEFORE AND QUESTION IS HOW
IT HAS BEEN IMPLEMENTING AND
CHANGED PRACTICE AND
REHABILITATION GOOD NEWS HERE
EVERY TIME YOU HEAR ABOUT TOP 5
IN THE UNITED STATES, YOU READ
THAT ACUTE CARE IMPROVED
SIGNIFICANTLY AND IT HAS REDUCED
MORTALITY AND INCREASED
MORBIDITY SIGNIFICANTLY AND WHY
REHABILITATION IS MORE RELEVANT
TODAY THAN PREVIOUSLY. PEOPLE
ARE SURVIVING LOTS OF DISEASES
THAT WOULD HAVE KILLED THEM IN
THE PAST AND ENCOURAGING
COLLEAGUES THAT ARE LEFT ON THE
BOARD THAT WE ARE ALL LOOKING UP
TO YOU AND THERE IS STILL A LOT
OF WORK TO BE DONE.
AND I AM SURE THAT
[INDISCERNIBLE] TAKE YOUR ADVICE
SERIOUSLY LIKE WE HAVE DONE IN
THE LAST FOUR YEARS AND SAYING
GOOD LUCK AND I'M SURE I SPEAK
FOR THE THREE OF US IF THERE ARE
THINGS YOU FEEL WE CAN ADD AND
FEEL FREE TO REACH OUT TO US SO
WE CAN BE READY TO LEND OUR
EXPERTISE AND ON THAT NOTE BIG
THANK YOU TO DR. BIANCHI AND DR.
THERESA CRUZ AND DR.
[INDISCERNIBLE] FOR A WONDERFUL
FOURIRES ELIZA IS OUT THERE.
OH, SHE IS HERE. HELP ME TO
TELL HER A BIG THANK YOU FOR
ADMINISTRATIVE SKILLS AND
EVERYTHING AND TO ERIC
SPECIFICALLY FOR SHARING THE
GROUP AS PART OF THIS GRADUATING
SET I CALL IT. IT HAS BEEN A
LOT OF FUN AND SOCIAL
[INDISCERNIBLE] HAVE BEEN VERY
GOOD AND THANK YOU FOR THE
OPPORTUNITY TO SERVE AT THIS
LEVEL AND WISH BOARD ALL
SUCCESSES AND THOSE WHO WORK
BEHIND THE SCENES TO MAKE A
SUCCESS AND BIG THANK YOU TO YOU
AND COLLEAGUES LEFT ON THE BOARD
GOOD LUCK. THANK YOU. BY THE
WAY, DR. [INDISCERNIBLE] IS A
GOOD DANCER.
>> [LAUGHING].
>> THANK YOU. MY PLEASURE TO
INTRODUCE DIANA BIANCHI DIRECTOR
OF NICHD WHO IS HERE TO GIVE HER
REPORT TO THE BOARD.
>> THANK YOU VERY MUCH. YOU
WANT ME TO USE THIS MICROPHONE?
WONDERFUL. IF WE LEARNED
NOTHING ELSE FROM THE LAST THREE
YEARS IT IS PIVOTING INSTANTLY
BETWEEN VIRTUAL, IN-PERSON,
WHICH MICROPHONE TO USE AND WHEN
TO MUTE. I WANT TO SAY IT IS A
GREAT PLEASURE TO SEE EVERYBODY
IN PERSON THAT THIS IS THE FIRST
BOARD OR ADVISORY MEETING I HAVE
ATTENDED IN THREE YEARS
INSTITUTE AND CENTER DIRECTORS
ARE MEETING IN PERSON AND OUR
COUNCIL MEETING WILL BE OUR
FIRST WHEN WE MEET IN JUNE.
THANK YOU FOR MEETING THE TRIP
AND THIS IS SECOND DAY ENTIRE
WEEKEND AND SOCIETY MEETING AND
ARE MAJOR PEDIATRIC RESEARCH
MEETINGS AND YESTERDAY I HAD A
NUMBER OF DIFFERENT SPEAKING
ENGAGEMENTS HERE.
IN ADDITION AFTER WE ARE DONE I
HAVE TO DEPART WE HAVE UPCOMING
HEARING ON MATERNAL HEALTH THAT
IS CONGRESSIONAL HEARING THAT IS
DURING WHICH I WILL REPRESENT
NIH AND WILL BE GRILLED ON WHAT
WE ARE DOG TO ADDRESS ISSUE OF
INCREASING MATERNAL MORTALITY IN
THE UNITED STATES AND HEALTH
DISPARITIES BETWEEN WHITE AND
BLACK WOMEN AND AMERICAN INDIAN
AND ALASKA NATIVE WOMEN AND WE
ARE TRYING TO JUGGLE EVERYTHING
AT THE SAME TIME AND WITHOUT
FURTHER ADO, WE WILL TALK ABOUT
REHABILITATION AND WHO IS
ADVANCING SLIDES.
I'M NOT.
>> THANK YOU.
>> COULD I HAVE THE NEXT SLIDE?
TALKING ABOUT WHAT YOU KNOW
FISCAL YEAR 23 APPROPRIATIONS
AND PRESIDENT REQUESTED FOR
FISCAL YEAR 24 THAT IS ONE
REASON I'M GOING TO CAPITAL HILL
AND NCMRR CONNECTIONS WITHIN
NICHD AND OPPORTUNITIES IN
REHABILITATION RESEARCH AND WHAT
IS NEW WITH ARPA H AND THEN SOME
OF THE ADVISORY COMMITTEES TO
THE DIRECTORS WORKING GROUPS AND
NIH-WIDE STRATEGIC PLAN FOR
DIVERSITY EQUITY INCLUSION AND
ACCESSIBILITY AND WHY IT IS
IMPORTANT FOR NCMRR AND STAFF
UPDATES.
NEXT SLIDE, PLEASE.
SO, WE ARE ALREADY HALF WAY
THROUGH FISCAL YEAR 23.
THIS MAY HAVE BEEN THE END OF
THE GOLDEN YEARS THAT WE HAD
APROPRIATION OF $47.5 BILLION
THAT WAS INCREASE OF $2.5
BILLION OVER THE PREVIOUS FISCAL
YEAR.
WE RECEIVED A MODEST INCREASE
MORE OR LESS BUDGET REMAINED
FLAT FOR SPECIFIC CERTAIN
PROGRAMS AND BUDGET IS $1.75
BILLION.
THERE WERE SET ASIDES THAT ARE
ALWAYS IMPORTANT AND WE
HISTORICALLY HAVE GOTTEN A LOT
OF REQUIREMENTS WITHOUT
ASSOCIATED IMPROVEMENTS AND
IMPROVE IS IMPLEMENTING MATERNAL
HEALTH AND PREGNANCY OUTCOMES
VISION FOR EVERYONE THAT IS
NIH-WIDE INITIATIVE ADDRESSING
MORBIDITY AND MORTALITY AND $30
MILLION INTO NICHD'S BASE FOR
THAT PROGRAM DOESN'T DIRECTLY
EFFECT REHABILITATION AND GOING
INTO OUR BASE IT TRICKLES DOWN
INTO OTHER AREAS. IF IN THE
BASE AND INSTITUTE GETS LET'S
SAY A 2% INCREASE OR 5 INCREASE,
THAT MEANS THAT ESSENTIALLY WE
GET MORE MONEY BASED ON THE
ADDITIONAL MONEY COMING IN FOR
OTHER TOPICS AND THEN WE DO HAVE
A LITTLE EXTRA MONEY TO USE FOR
OTHER PROGRAMS AND WE RECEIVED
$10 MILLION FOR MULTISYSTEM
INFLAMMATORY CHILDREN THAT IS
INCREASE IN THE PAST YEAR AND $3
MILLION RESEARCH IMPACT OF
COVID-19 FOR PREGNANT AND
LACTATING WOMEN AND TOP 3
REFLECT FACT CONGRESS IS AWARE
OF RESEARCH WE HAVE DONE IN LAST
FEW YEARS AND INITIALLY CONGRESS
DIDN'T THINK CHILDREN GOT COVID
OR WORRYING ABOUT PREGNANT
PEOPLE AND THERE IS A LITTLE
DELAYED BUT WE ARE GRATEFUL FOR
APPROPRIATIONS AND IS
ENCOURAGING THEY ARE READING
WHAT WE ARE DOING AND RECEIVING
$15 MILLION FOR RESEARCH AND
HEALTH IMPACTS FOR CHILDREN AND
TECHNOLOGY AND SOCIAL MEDIA USE
PROBLEM BEFORE THE PANDEMIC AND
MORESO NOW. CHILDREN WERE
ISOLATED AT HOME AND SPENDING
TIME ON [INDISCERNIBLE]. NEXT
SLIDE, PLEASE.
THERE ARE OTHER APPROPRIATIONS
INVOLVING NICHD AND WE ARE
CO-CHAIRING AND HAVE INTERESTS
IF IN AREAS AND DOWN SYNDROME
RESEARCH CONTINUES TO DO VERY
WELL WITH SUPPORT FROM CONGRESS.
IN ADDITION, THERE IS A NEW
INITIATIVE THAT IS COMING FROM
SENATOR SCHUMER'S OFFICE THAT
PROVIDED $10 MILLION FOR
RESEARCH THAT IS BASICALLY ON
WHY CHILDREN ARE DELAYED IN
SPEECH.
SO, IT IS A SO-CALLED LATE
TALKERS THAT IS NOT SPECIFICALLY
RELATED TO DEVELOPMENTAL DELAYS
BUT IS REALLY MEANT TO ADDRESS,
YOU KNOW, A WIDE VARIETY OF
CAUSES FOR WHY CHILDREN DEVELOP
LANGUAGE RELATIVELY LATE COMPARE
TODAY OTHER CHILDREN AND IT IS
CALLED THE TALK INITIATIVE.
WE ARE WORKING WITH NATIONAL
INSTITUTE OF DEAFNESS AND
COMMUNICATION DISORDERS AND
NIDCD TO CO-LEAD THIS
INITIATIVE. I SHOULD SAY FOR
INCLUDE, WE CO-LEAD INITIATIVE
WITH NHLBI AND NATIONAL
INSTITUTE ON AGING AND IN
ADDITION CONGRESS REPORTED $40
MILLION FOR RESEARCH ON HEALTH
IMPACTS FOR CLIMATE CHANGE AND
WE ARE -- I'M ON EXECUTIVE
COMMITTEE FOR THAT INITIATIVE
AND WE ARE THERE TO CONTINUE TO
REMIND EVEN ABOUT IMPACTS OF
CLIMATE CHANGE FOR PEOPLE WITH
DISABILITIES AND WE ALSO, NIH
RECEIVED $12.4 MILLION FOR
FIREARM RESEARCH THAT IS NEW AND
RELATIVELY RECENT THAT WE ARE
ABLE TO ACTUALLY DO RESEARCH ON
FIREARMS AND CONGRESS GAVE $180
MILLION FOR ENVIRONMENTAL
INFLUENCES ON CHILD HEALTH
OUTCOMES AND I'M ENCOURAGED THAT
A LOT OF THE ACTIVITIES THAT OUR
STAFF HAS SPENT AN ENORMOUS
AMOUNT OF TIME IN REPRESENTING
OUR INTERESTS AND RESEARCH
ADVANCES.
THOSE ARE BEING APPRECIATED BY
CONGRESS.
NEXT SLIDE.
SO, THEN THERE IS A PRESIDENT'S
BUDGET THAT IS RELEASED IN
MARCH. IT WAS ESSENTIALLY FLAT.
WE HAVE BEEN TOLD BY THE OFFICE
OF THE NIH DIRECTOR THAT IF WE
GET A FLAT BUDGET THAT IS A
SUCCESS.
THERE -- AS YOU KNOW, THERE IS
CONCERN ABOUT THE DEBT CEILING
AND CONGRESS IS TAKING A LONG
AND HARD LOOK AT ALL OF THE
APPROPRIATIONS.
SO, IF WE HAVE A FLAT BUDGET,
IT WILL BE CONSIDERED TO BE
SUCCESSFUL OUTCOMES AND WE HAVE
HAD ENORMOUS GROWTH OVER THE NIH
BUDGET OVER THE PAST 10 YEARS OR
SO. ITEMS OF INTEREST IN THE
CONGRESSIONAL JUSTIFICATION AND
NIH DIRECTORS OVERVIEW
HIGHLIGHTED EARLY STAGE
INVESTIGATORS INCLUDING
INVESTIGATORS WHO ARE PART OF
THE HELPING TO END ADDICTION
LONG TERM INITIATIVE.
AND THE OVERVIEW HIGHLIGHTED THE
BENEFITS OF NONFARM COLONLIC
TREATMENT FOR NEONATAL OPIOID
WITHDRAWAL SYNDROME AND
PUBLICATION THAT WAS COSPONSORED
BY NICHD AND ECHO THAT IS UNDER
THE RUBRIC OF HEEL, THAT
PUBLICATION IS JUST PUBLISHED
SUNDAY IN NEW ENGLAND JOURNAL OF
MEDICINE AND PRESENTED AT
PEDIATRIC RESEARCHER MEETINGS ON
SUPD.
THERE IS -- YOU KNOW, WE HAVE
BEEN SPEAKING WITH MEDIA.
THIS IS VERY IMPORTANT.
IT SHOWED THAT A
NONPHARMACOLOGIC APPROACH:
EATING, SLEEPING, AND CONSOLING
BABIES THAT ARE SUFFERING FROM
WITHDRAWAL DUE TO EXPOSURE TO
OPIOIDS IN THE WOMB. THAT
TREATMENT WAS ABLE TO REDUCE
HOSPITALIZATION OR MEDICAL
DISCHARGE AND REDUCING NEED FOR
BABIES TO RECEIVE OPIOIDS AS
PART OF WITHDRAWAL TREATMENT AND
WAS VERY SUCCESSFUL OUTCOME OF
THE HEEL INITIATIVE.
RESEARCH ON COVID AND IF IN KIDS
AND PREGNANT PEOPLE AND FLAT
IMPROVE FLAT AND MORE MONEY WAS
GIVEN FOR CLIMATE CHANGE
RESEARCH.
NEXT SLIDE, PLEASE.
WE HAVE BEEN VERY BUSY WITH
CONGRESSIONAL INTERACTIONS.
WE HAVE BEEN -- IT IS KIND OF
LIKE, YOU KNOW, AFTER LIVING IN
COVID TIMES EVERYBODY IS BACK
AND MEETINGS ARE BACK AND GALAS
ARE BACK. WE ARE THERE AT THE
FOREFRONT REPRESENTING ALL OF
NICHD'S INTEREST. WE BRIEFED
CONGRESSIONAL MEMBERS AT THE
COALITION TO ADVANCE MATERNAL
THERAPEUTICS ON IMPLEMENTATION
OF RESEARCH THAT IS RELATED TO
PREGNANT AND LAGTATING WOMEN AND
PREG LACK INITIATIVE AND WE WENT
TO CAPITAL HILL TO BRIEF MEMBERS
OF CONGRESS AS PART OF THE HEEL
PRESENTATION THAT WE
SPECIFICALLY SPOKE ABOUT EAT AND
SLEEP AND CONSOLE STUDY EACH
THOUGH IT WASN'T PUBLISHED AT
THE TIME. WE HAD MANY BRIEFINGS
RELATED TO CLIMATE CHANGE AND
HUMAN HEALTH.
I JUST WANTED TO MENTION BRIEFLY
THAT THERE IS A DIFFERENCE IN
THE WAY THAT THIS USE OF
APPROPRIATIONS HEARINGS ARE
BEING CONDUCTED SO FOR THE LAST
FOUR OR SO YEARS I HAVE BEEN
TYPICALLY GOING TO HOUSE HEAR
THAGZ ARE OF INTEREST IN A
NUMBER OF POPULATIONS AND THIS
YEAR IS A COMPLETELY NEW
COMMITTEE MEMBERSHIP. THEY ARE
THE CHAIR IS DIFFERENT AND
PARTICULARLY REPUBLICAN SIDE OF
THAT LABOR HADHS APROPRIAPROPRI
COMMITTEE AND REPUBLICAN SIDE IS
ALMOST ALL NEW AND SOME HAVE
EITHER RETIRED OR DIDN'T GET
ELECTED. IT IS A DIFFERENT
COMMITTEE. THEY DIDN'T WANT DR.
HAI BACK TO BE SUPPORTED BY
VARIOUS INSTITUTE DIRECTORS AND
DR. TABAK TESTIFIED IN ADDITION
TO RISH ELFROM THE CDC AND DON
OCONELTHAT WAS MORE OF AN
OVERSIGHT RATHER THAN A BUDGET
HERE. VERY DIFFERENT. SENATE
HEARING WILL BE THURSDAY OF THIS
WEEK.
IT WILL BE MORE TYPICAL
COMMITTEE HEARING WITH DR. TABAK
AND BY MEMBERS OF OTHER
INSTITUTES AND FACT THAT WE HAVE
A SPECIAL HEARING ON MATERNAL
HEALTH IS VERY UNUSUAL. I WILL
BE TESTIFYING WITH CDC AND HRSA.
NEXT SLIDE, PLEASE.
ALL RIGHT. NEXT SLIDE. ABLEISM
IS AN EXTREMELY IMPORTANT PART
OF OVERALL NIH INITIATIVES AND
NCMRR IS LEADINGLET ABLEISM
INITIATIVE. TERESA
SPECIFICALLY.
YOU ALREADY TALKED ABOUT IT.
>> YOU DON'T NEED TO HEAR MORE
ABOUT THAT.
>> BUT, A VERY, VERY SUCCESSFUL
WORKSHOP. I RECEIVED COMMENTS
FROM PEOPLE WHO ATTENDED AND YOU
TALKED ABOUT IT. SO, THAT IS
GREAT.
NEXT SLIDE, PLEASE.
IN ADDITION, THERE HAS BEEN SOME
WORKSHOPS AND FUNDING
OPPORTUNITIES RELATED TO NICHD'S
STRATEGIC PLAN AND ASPIRATIONAL
GOAL TO ADVANCE ABILITY TO
REGENERATE HUMAN LIMBS. THIS IS
ONE OF THE 10 ASPIRATIONAL
GOALS.
THERE WAS A WORKSHOP HELD ON
THAT. NOW, AS WORKSHOPS OFTEN
DO LEAD TO FUNDING
OPPORTUNITIES, THERE IS A
FUNDING OPPORTUNITY.
PLEASE SPREAD THE WORD.
APPLICATIONS ARE DUE IN JULY.
WE HOPE KNOWLEDGE GENERATED FROM
RESEARCH TRANSLATE INTO IMPROVED
RESIDUAL HEALTH AND TREATMENTS.
NUMBER OF PEOPLE HAVE
[INDISCERNIBLE]. NEXT SLIDE,
PLEASE.
REPRODUCTIVE HEALTH, AS YOU
KNOW, WE HAVE DONE A LONG-TIME
INTEREST OF INCLUSION WITH
PEOPLE WITH DISABILITIES IN
REPRODUCTIVE HEALTH RESEARCH
THAT IS A PRIORITY FOR US.
THERE IS RECENTLY A REVIEW
ARTICLE THAT IS WRITTEN BY DR.
SENORI, DAVIS AND
[INDISCERNIBLE] ON INTERSECTION
OF DISABILITY AND PREGNANCY.
DISABILITY IS DEFINITELY A RISK
FACTOR FOR MATERNAL MORBIDITY
AND MORTALITY AND RECOMMEND THIS
ARTICLE THAT IS CONDITIONS TO
CONTRIBUTE TO MATERNAL MORBIDITY
RELATING TO PREGNANCY AND WOMEN
WITH DISABILITIES AND AS ALWAYS
OUR GOAL WE WANT TO PROVIDE
EVIDENCE-BASED INFORMATION TO
DECREASE RISK TO MOTHERS AND
THEIR INFANTS AND THERE IS A LOT
OF DATA DEMONSTRATING WOMEN WITH
PHYSICAL DISABILITIES DON'T GET
STANDARD OF CARE. WE ARE TRYING
TO ADDRESS THAT. NEXT SLIDE,
PLE
PLEASE.
>> HERE IS NEW OPPORTUNITIES AND
FDA APPROVED STIMULATION FOR
STROKE AND APPROVING IN TENT 21
AND YOU MIGHT KNOW MORE ABOUT
THIS THAN I DO IT WILL OPEN THE
DOO R FOR MORE RESEARCH IT HAD
BE EASIER AND LESS COSTLY TO GET
PEOPLE IMPLANTED PART OF
CLINICAL CARE. YOU TALKED ABOUT
IMPLEMENTATION RESEARCH
PREVIOUSLY. THIS IS A GREAT
OPPORTUNITY FOR IMPLEMENTATION
RESEARCH.
WE NEED TO BETTER UNDERSTAND HOW
TO OPTIMIZE EFFECTIVENESS OF
STIMULATION COMBINED WITH REHAB.
STIMULATION IS PART OF THE
TREATMENT AND NEED TO COMBINE
WITH PHYSICAL AND OCCUPATIONAL
THERAPY.
SPINAL CORD STIMULATION LOOKS
LIKE APPEARS TO BE ON A SIMILAR
PATH THAT YOU HAVE THESE SLIDES.
HERE IS THE FUNDING
ANNOUNCEMENT. NEXT SLIDE.
THERESA IS REPRESENTING US ON
THE BRAIN INITIATIVE.
SHE CAN TELL US MORE ABOUT IT.
BASIC NEUROSCIENCE WILL ALSO
RESULT IN TARGETING SPECIFIC
CELL TYPES FOR RECORDING IN
MODULATION AND QUESTION IS CAN
REHABILITATION RESEARCH USE
ADVANCES FOR TARGETED
NEUROPLASTICITY INTERVENTIONS?
ANIMAL MODELS CAN DEFINITELY
HELP.
THEY CAN HELP TO PROVIDE
PRECLINICAL FARM LOGIC
INTERVENTIONS AND ARE WE USING
THE RIGHT MODELS?
GIVING A BRIEF ANECDOTE FOR OWN
LAB'S RESEARCH HAVING TO DO WITH
DOWN SYNDROME. MODEL OF DOWN
SYNDROME THAT HAS BEEN GOLD
STANDARD FOR DOWN SYNDROME
RESEARCH FOR 25 YEARS AND IS A
NEWER MODEL SIMILAR TO TS65DM
THAT IS ONE OF THE BEST MODELS
WITH AN EXTRA FREE CHROMOSOME
THAT IS VERY MUCH LIKE TRISOMY
21 AND HAS EXTRA INFORMATION ON
MASS CHROMOSOME 17 AND TO MAKE A
LONG STORY SHORT, COLLEAGUES IN
FRANCE CRISPRED OUT THAT MMU-7
TAENMATERIAL. WE HAVE NOW TWO
MODELS AND BOTH THAT HAVE FREELY
CIRCULATING EXTRA CHROMOSOMES
AND ONE HAD EXTRA MATERIAL AND
ONE DIDN'T AND TURNED OUT WE HAD
A MAJOR PAPER THAT IS PUBLISHED
IN BIOLOGICAL PSYCHIATRY AND
TS65DM MODEL HAS EXTRA GENES NOT
HOMOLOGOUS.
THOSE CREATED A MORE SEVERE
PHENOTYPE THAT HAD NOTHING TO DO
AND LOOKED LIKE ON THE SURFACE
IS TRISOMY 21 THAT IT WASN'T AND
IT MIGHT EXPLAIN WHY ALL OF THE
PRECLINICAL THERAPEUTIC TRIALS
THAT WERE SUCCESSFUL IN MICE
NEVER TRANSLATED TO HUMANS.
IT WAS THE WRONG MODEL.
WE HAVE LEARNED THAT EVEN
SOMETHING THAT HAS BEEN A GOLD
STANDARD FOR 25 YEARS NEEDS TO
BE CHALLENGED AND EXAMINED TO
DETERMINE ONCE YOU START TO
TRANSLATE AND USE RESOURCES TO
TRANSLATE INTO CLINICAL CARE,
ARE YOU USING THE RIGHT MODEL?
RIGOR AND REPRODUCIBILITY MAKING
SURE.
SORRY IT IS FIRST HAND RESEARCH
I'M PASSIONATE ABOUT. THANK
YOU. ARPA H EVERYBODY IS
EXCITED ABOUT IT. MESSAGE I
WANTED TO COMMUNICATE WITH THE
SLIDE IS THAT ARPA H IS AN
OPPORTUNITY FOR EVERYONE.
THEY ARE DISEASE AGNOSTIC AND
CONGRESS APPROPRIATED $2.5
BILLION IN FISCAL YEAR 23. THEY
HAVE A SEPARATE FUNDING STREAM
AND THEY USE SOME OF NIH'S
INFRASTRUCTURE LIKE HUMAN
RESOURCES FOR EXAMPLE.
ARPA H DIRECTOR REPORTS DIRECTLY
TO SECRETARY OF HEALTH AND HUMAN
SERVICES AND DON'T ELAPSE AND
READ IN NEWSPAPERS FIGHT WHERE
ARPA H HEADQUARTERS WILL GO.
BUT, THERE IS LABS THAT REALLY
YOU KNOW PROGRAM ADMINISTRATION
HAS SEVERAL HEADQUARTERS.
THE WHOLE IDEA BEHIND ARPA H IS
IT IS PROGRAM MANAGER THAT
PROPOSES A VERY IMPORTANT
PROBLEM THAT NEEDS TO BE SOLVED
AND THEY ESSENTIALLY MAKE THE
PROPOSAL AND ARPA H TEAM DECIDES
IS THIS SOMETHING WORTH FUNDING?
THEY ARE SEEKING PROGRAM
MANAGERS TO IDENTIFY HEALTH
RELATED CHALLENGES THAT ARE
CERTAINLY MANY IN YOUR FIELDS.
PROGRAM MANAGER ACTUALLY
IDENTIFIES TEAMS AND
MULTI-DISCIPLINARY TEAM FROM
INDUSTRY AND ACADEMICS AND FROM
GOVERNMENT TO SOLVE THE PROBLEM.
IF YOU ARE AN ACADEMIC, IT IS
OKAY TO GO TO ARPA H. THESE ARE
TIME-LIMITED PROGRAMS AGE TLEEZ
YEARS OR 6 YEARS AND IF YOU HAVE
SMART PEOPLE THAT CAN GO INTO
ARPA H THEY CAN COME BACK AS
WELL.
THIS IS AN OPPORTUNITY TO PITCH
HIGH RISK AND HIGH IMPACT
RESEARCH THAT EFFECTS OUR
POPULATIONS.
NEXT SLIDE.
THEY HAVE A COMPETITION THAT IS,
YOU KNOW, PRETTY MUCH OVER FROM
THE PERSPECTIVE OF APPLYING.
THEY MODELED IT ON MARCH MADNESS
AND COULDN'T USE THE TERM MARCH
MADNESS. IT IS TRADEMARKED AND
THEY ENCOURAGE SUBMISSIONS AND
THEY TOOK THE 64 SUBMISSIONS AND
NOMINATIONS ARE ALL ACCEPTED.
THEY ARE MOVING THROUGH, YOU
KNOW, THE BRACKETS.
THANK YOU. THE BRACKETS.
SO, YOU CAN LOOK IT UP TO SEE
WHAT THE PROGRESS IS. NEXT
SLIDE.
THIS IS THE MOST IMPORTANT
SLIDE, I THINK.
AS YOU KNOW, THERE IS AN
ADVISORY COUNCIL TO THE
DIRECTOR. WORKING GROUP
DIVERSITY WITH A SUBGROUP ON
INDIVIDUALS WITH DISABILITIES
THAT CREATED A REPORT.
PEOPLE WITH DISABILITIES ARE
LARGEST SINGLE MINORITY
POPULATION IN THE UNITED STATES
AND ARE FASTEST GROWING MINORITY
POPULATION AND PEOPLE WITH
DISABILITIES REPRESENT
APPROXIMATELY 9% OF SCIENTIFIC
RESOURCE AND RESEARCHERS WITH
DISABILITIES ARE
UNDER-REPRESENTED IN NIH
FUNDING.
FEW DATA IS PUBLICLY AVAILABLE
ABOUT OUR WORKFORCE HERE OR OUR
INTERNAL WORKFORCE.
IN BROADER RESEARCH WORKFORCE OR
PARTICIPATION AND PEOPLE WITH
DISABILITIES AND NIH-FUNDED
STUDIES AND GROUP CONCLUDED WE
HAVE TO DO MORE IN TERMS OF
COLLECTING DISABILITY DATA ON
RESEARCH WORKFORCE.
OTHER THINGS WILL COME OUT OF
THIS GROUP THAT ARE NOT QUITE
READY FOR PUBLIC DISSEMINATION.
NEXT SLIDE.
SOME THINGS THAT ARE SUGGESTED
INCLUDE UPDATING NIH MISSION
STATEMENT THAT IS CURRENT WILL I
TO SEEK FUNDAMENTAL KNOWLEDGE
ABOUT NATURE AND BEHAVIOR OF
LIVING SYSTEMS AND APPLICATION
OF THAT KNOWLEDGE TO ENHANCE
HEALTH AND LENGTH AND LIFE AND
REDUCE ILLNESS AND DISABILITY.
TO DEVELOP NIH-WIDE EFFORT TO
IDENTIFY AND ADDRESS ANY
STRUCTURAL ABLEISM THAT MAY
EXIST AND PROMOTIN COLLUSION
INTERNALLY AND FOR THE NIH
FUNDED EXTRAMURAL RESEARCH
WORKFORCE AND EXPANDING EFFORTS
TO INCLUDE DISABILITY
COMMUNITIES AND PERSPECTIVES OF
PEOPLE WITH DISABILITIES AND
PEOPLE WITH LIVED EXPERIENCE.
CONDUCT RESEARCH ON DISABILITY
HEALTH AND HEALTH CARE
DISPARITIES AND EQUITY AND
ENSURE DISABILITY INCLUSION AND
ANTI-ABLEISM ARE CORE COMPONENTS
OF NIH AND DEIA EFFORTS AND
PLEASE TODAY SAY THAT ALLISON
WILL PLAY A LEADERSHIP ROLE IN
THAT. AND MAINTAINING
ACCOUNTABILITY FOR DISABILITY
INCLUSION EFFORTS THAT IS ALL
BEING RAISED NOW TO THE LEVEL OF
THE OVERALL OFFICE OF THE
DIRECTOR AND THE WORKING GROUP.
NEXT SLIDE.
THERE IS ANOTHER ACD WORKING
GROUP ON POST DOCS AND I'M SURE
ALL WHO HAVE LABS ARE HAVING A
PROBLEM WITH RECRUITING POST
DOCS THAT IS A SIGNIFICANT
CHALLENGE AND SEPARATE WORKING
GROUP IS NOW MAKING
RECOMMENDATIONS ON HOW TO DO
BETTER IN TERMS OF RECRUITING
US-BASED POST DOCTORAL FELLOWS
AND THESE ARE THEIR
RECOMMENDATIONS.
THEY ARE VERY AWARE OF CONCERNS
IN TERMS OF LOW SALARIES OF
POSTDOCTORAL FELLOWS AND QUALITY
OF LIFE AND WORK/LIFE BALANCE
AND ISSUES SUCH AS CHILDCARE AND
ULTIMATELY JOB OPPORTUNITIES
THAT ARE FOLLOWING POST DOCTORAL
FELLOWSHIPS AND THIS GROUP IS
ACTIVELY INVESTIGATING THIS AREA
THAT THEY WILL PROVIDE THEIR
FINAL RECOMMENDSES AT END OF
DECEMBER. NEXT SLIDE.
SO, YOU MAY HAVE RECEIVED A COPY
OF THE RECENTLY RELEASED
NIH-WIDE STRATEGIC PLAN FOR
DIVERSITY EQUITY INCLUSION AND
ACCESSIBILITY AND THINK WHAT IS
IMPORTANT HERE AND WHAT WE ARE
TRYING TO PROMOTE IS INCLUDING
ACCESSIBILITY IN ALL
IMPLEMENTATION OF THE STRATEGIC
PLAN AND HIGHLIGHTING WITH THIS
SLIDE THAT NMCRR HAD A CALLOUT
IN THIS OVERALL STRATEGIC PLAN.
NEXT SLIDE.
THEN THERE IS AN EXECUTIVE.
THERE IS A TWO-PAGE EXECUTIVE
SUMMARY THAT TALKS ABOUT GROWING
SUSTAINING DEIA THROUGH
STRUCTURAL AND CULTURAL CHANGE.
I DON'T -- I CAN'T READ THIS
WHOLE THING. WE ARE VERY
CONCERNED ABOUT THE
ACCESSIBILITY PART OF THE
STRATEGIC PLAN. AND IN MAKING
SURE THAT ACCESSIBILITY IS
INCLUDED IN ALL ASPECTS OF THIS.
NEXT SLIDE, PLEASE.
OKAY. GETTING NEAR THE END.
WE ARE VERY EXCITED TO ANNOUNCE
THE APPOINTMENT OF AMANDA ELYSE
PRICE WHO IS NEW DIRECTOR OF
NICHD OFFICE OF HEALTH EQUITY
WHO EARNED HER PHD AND
BACHELOR'S OF SCIENCE IN
EDUCATION AND EXERCISE
PHYSIOLOGY WITH DOCTORAL
CONCENTRATION IN STATISTICS FROM
THE UNIVERSITY OF MIAMI WHO HAS
BEEN A TENURED ASSOCIATE
PROFESSOR AND IN ACADEMIA SHE
FOCUSES ON INTERVENTION AND
MANAGEMENT OF DISEASES TO A
HEALTHY LIFESTYLE BEHAVIOR.
SHE WAS A TENURED ASSOCIATE
PROFESSOR IN SCHOOL OF HEALTH
SCIENCES IN WINSTON SALEM STATE
UNIVERSITY TEACHING TRAINED AND
MEN TORED UNDER-REPRESENTED
SCHOLARS IN RESEARCH IN THE
BIOMEDICAL SCIENCES AND SHE CAME
TO US FROM NATIONAL INSTITUTE OF
NURSING RESEARCH WHERE SHE
DIRECTED PREVENTIVE MEDICINE
PORTFOLIO AND TEAM LEAD IN
DIVISION OF EXTRAMURAL SCIENCE
PROGRAMS. SHE IS A GREAT
RECRUIT. THANK YOU SO MUCH.
NEXT SLIDE, PLEASE.
AND LASTLY, WE FINALLY HAVE A
NEW PERMANENT SCIENTIFIC
DIRECTOR AND SCIENTIFIC DIRECTOR
LEADS INTRAMURAL RESEARCH
PROGRAM ON CAMPUS THAT IS DR.
CHRISTOPHER MCBANE AND IF YOU
HEARD HIM SPEAK AT OUR COUNCIL
MEETINGS AND WATCH VIDEO THAT
HAS UNMISTAKABLE SCOTTISH ACCENT
AND GREAT SCOTTISH PHRASES. HE
IS TRAINED AT UNIVERSITY OF
ABERDEEN AND UNIVERSITY OF
CAMBRIDGE BUT CAME TO THE STATES
TO DO HIS POST DOCTORAL
FELLOWSHIP AND THEN WENT TO
NORTH CAROLINA AND CAME TO NICHD
IN 1993 AND AS AN INVESTIGATOR
IN LA BTORY OF CELLULAR AND
MOLECULAR NEUROPHYSIOLOGY AND IS
NOW LEAD OF THE UNIT. HE WAS
ALSO DEPUTY SCIENTIFIC DIRECTOR
INTRA MURAL RESEARCH WHO HAS
BEEN ACTING DIRECTOR AND HAS
DONE A TERRIFIC JOB DURING
CHALLENGING TIMES THAT INCLUDED
BOTH THE PANDEMIC AND A NUMBER
OF STRUCTURAL DISASTERS ON THE
INTRAMURAL CAMPUS AND HAD A
MAJOR MAJOR CHRISTMAS EVE FLOOD
IN THE NEUROSCIENCE BUILDING.
HIS LABORATORY WAS GROUND ZERO
AND LABORATORY WAS POURING AND
DESTROYED EQUIPMENT AND THROUGH
IT ALL HE DEMONSTRATED
OUTSTANDING LEADERSHIP. HE IS A
NEUROSCIENTIST.
THERE IS RELEVANCE FOR NCMRR.
NEXT SLIDE, PLEASE.
LASTLY AS ALWAYS, WE ARE HIRING
AND WANT EXCELLENT PEOPLE.
WE ARE LOOKING FOR PROGRAM
OFFICERS IN A NUMBER OF
DIFFERENT AREAS AND I'M PLEASED
TO SAY THAT ALL OUR MAJOR
LEADERSHIP POSITIONS HAVE BEEN
FILLED AND WE HAVE SELECTED A
CLINICAL DIRECTOR WHO WILL BE
THE PERSON WHO OVERSEES OUR
FOOTPRINT IN THE NIH CLINICAL
CENTER THAT IS THE LARGEST
BIOMEDICAL RESEARCH HOSPITAL IN
THE WORLD.
WE ARE WAITING FOR THAT PERSON
TO UNDERGO ETHICS CLEARANCE
BEFORE WE WIDELY PUBLICIZE IT
AND THE PERSON HAS SIGNED A
LEASE AND IS DEFINITELY COMING.
WE ARE VERY EXCITED ABOUT THAT.
FINALLY, ALL OUR LEADERSHIP
POSITIONS AT THE EXECUTIVE LEVEL
WILL BE FILLED.
HOWEVER, THERE ARE OTHER
OPPORTUNITIES FOR PEOPLE TO
ENJOY US AND, AS YOU KNOW, WE
ARE A LOT OF FUN TO WORK WITH.
IF YOU HAVE EXCELLENT PEOPLE WHO
WANT TO EXPLORE IN THE
GOVERNMENT, PLEASE DIRECT THEM
TO OUR JOBS PAGE. THAT IS MY
LAST SLIDE.
I'M HAPPY TO SPEND THE REST OF
THE TIME ANSWERING QUESTIONS.
>> THANKS VERY MUCH. QUESTIONS
FOR DR. BIANCHI?
I WOULD LIKE TO START WITH ONE.
WE SPENT A LOT OF TIME TALKING
ABOUT TRAINING AND POST DOC
TIMELINE AND -- INDIVIDUALS WITH
DIFFERENT BACKGROUNDS OR THERE
ARE CERTAIN POPULATIONS WHERE IT
IS HARDER TO FIND THEM.
>> I WOULD SAY TO ANSWER YOUR
QUESTION, IT IS DEFINITELY A
PROBLEM ACROSS NIH. IT IS NOT
SPECIFIC TO OUR POPULATIONS.
IT IS INTERESTING THAT YOU USE
THE WORD PIPELINE.
YESTERDAY, ONE TALK THAT I GAVE
AT THE PEDIATRIC RESEARCH
MEETINGS IS DATA HAS SHOWN THERE
IS NO SUCH THING AS A PIPELINE.
LESS THAN 1% OF ALL OF THE
PEOPLE THAT WE HAVE FUNDED AND
SO WE HAVE A COHORT OF PEOPLE
WHO TRAINED BETWEEN 1989 AND
2010. THAT COHORT CONSISTS OVER
31,000 PEOPLE WHO HAVE FUNDED
NICHD IN SOME CAPACITY AND
STOPPED IN 2010 BECAUSE WE
WANTED A LONGITUDINAL VIEW.
WHAT SHOCKED ME IS LESS THAN 1%
OF PEOPLE GO THROUGH THE
PIPELINE FROM PREDOCTORAL TO
POST DOCTORAL TO CAR EAR
DEVELOPMENT TO R TYPE OF GRANTS.
DOESN'T MATTER IF WHITE, BLACK,
ASIAN AMERICAN INDIAN OR ALASKA
NATIVE. LESS THAN 1% FLOW
THROUGH THE PIPELINE THAT WE
LOVE SO MUCH. IT IS HARDTO
FITCH SOMETHING OR A BROKE N
PIPELINE WHEN THERE IS NOT ONE.
I WILL GO INTO THIS IN MORE
DETAIL AND PEOPLE ARE GOING IN
AND OUT AND GETTING FUNDED AND
ARE STEPPING OUT AND WE DON'T
KNOW WHY THAT IS. THESE DATA
ARE REALLY INTERESTING. AND
THEY NEED TO BE PROBED FURTHER
AND OTHER VERY IMPORTANT
TAKE-HOME POINT IS APPROXIMATELY
50% OF PEOPLE ARE ENTERING THAT
ARE NICHD GRANTEES THAT
REPRESENTERING AT R STAGE.
SO, EITHER THEY ARE LISTED ON PI
GRANTS AND DON'T HAVE INDIVIDUAL
GRANT AND NAME IS NOT ON
TRAINING GRANT SO WE CAN'T TRACK
THEM BUT DON'T THINK IT ACCOUNTS
FOR ALL 50% OF THEM AND PEOPLE
ARE SOMEHOW GETTING SKILLS AND
RESOURCES TO BE COMPETITIVE FOR
R LEVEL LATER ON.
>> WE TALKED ABOUT THAT
YESTERDAY AS WELL AND THOUGHT
THAT WE OFTEN STUDY THOSE WHO
LEAVE. I THINK WE SHOULD STUDY
THOSE WHO COME IN AS WELL.
>> THAT IS EXACTLY WHAT THIS
DATA HAS SHOWN US.
OUR OFTS OF SCIENCE POLICY AND
REPORTING ANALYSIS HAVE DONE AN
AMAZING JOB.
YESTERDAY, I JUST REPORTED ON
FUNDED INVESTIGATORS THAT ARE
ANALYZING PEOPLE WHO APPLY THAT
DON'T GET FUNDED TO LOOK AT HOW
PEOPLE ARE EITHER BEING
SUCCESSFUL OR NOT BEING
SUCCESSFUL THAT WILL CHANGE
CHAIVENG HOW WE THINK ABOUT
THINGS IN A DRAMATIC WAY.
>> THANKS.
OTHER QUESTIONS FOR DR. BIANCHI?
OKAY. WELL, THEN THANK YOU VERY
MUCH.
>> GREAT.
>> GREAT TO HEAR FROM YOU AGAIN
AS ALWAYS.
>> LOVE TO HEAR YOU.
>> OKAY. I HAVE TO
[INDISCERNIBLE]. I HAVE TO FACE
A FAKE THEY CALL IT THE MURDER
BOARD BUT IT IS A MOCK HEARING
AND GOING TO DOUBLE DOWN.
>> OKAY. NEXT ITEM IS A BRIEF
REPORT OUT FROM WORKING GROUP
DISCUSSIONS WE HAD YESTERDAY
ABOUT TRAINING WITH NCMRR. I
WILL TRY TO SUMMARIZE THE
DISCUSSION AND INVITE ALL OF YOU
TO FILL IN ANYTHING I MAY HAVE
MISSED.
GOAL OF THE DISCUSSION WAS
SETTING THE STAGE PERFORMING A
WORK GROUP CHARGED WITH
ASSESSING THE MISSION.
WE STARTED OUT WITH THERESA
PRESENTING DATA ON CURRENT
LANDSCAPE AND NCMR SPENDS LARGER
PERCENTAGE OF BUDGET ON TRAINING
THAN NICHD THAN NIH AS A WHOLE
AND THERE ARE CONCERNS AND
PUZZLES AND ONES WE TALKED ABOUT
WAS IDEA OF A PIPELINE AND
LOOKING FOR PIPELINE AND REALIZE
THERE DOESN'T SEEM TO BE MUCH OF
A PIPELINE AND INDIVIDUALS THAT
COME TO NCMRR RECEIVE FUNDING
AND DON'T SEEM TO BENEFIT FROM
OUR T AND K AWARDS AND SO ON AND
WE TALKED ABOUT RELATIVELY
RECENT SHIFT AWAY FROM FUNDING
K-12 PROGRAMS AND ONE OF THE
RATIONALES FOR DOING THAT WAS WE
THOUGHT THAT THERE WOULD BE
BENEFIT TO HAVING INDIVIDUALS
SUBMITTING INDIVIDUAL K AWARDS
AND FOUND THAT NUMBER OF K
AWARDS INCREASE INDIVIDUAL K
AWARDS INCREASE AS EXPECTED WITH
DECREASE IN K-12 FUNDING AND
FIGURING OUT HOW TO GET PEOPLE
INTO THE NCMRR COMMUNITY AND WE
ALSO DISCUSSIONED FACT THAT NIH
PIPELINE AS A WHOLE REMAINS TOO
SMALL FOR BRINGING IN DIVERSE
GROUP OF RESEARCHERS INTO OUR
FIELD AND AFTER THE DATA
PRESENTATION AND THERESA CHARGED
US WITH A QUESTION IF NCMRR HAS
TO HAVE TRAINING AS A MAJOR
FOCUS AND ONE ANSWER WE GAVE YOU
YESTERDAY I THINK WAS A
RESOUNDING YES TO THE QUESTION
AND WE CONTINUED AFTERWARDS TO
FOCUS NOT REALLY ON SOLUTIONS
ABOUT YOU REALLY OTHER QUESTIONS
THAT WE HAD AND DATA THAT WOULD
BE HELPFUL FOR THE WORKING GROUP
AND EVALUATION OF CURRENT
PROGRAMS AND SOME OF THE
CONSIDERATIONS THAT WE
DISCUSSED, I THINK THERE IS A
STRONG DISCUSSION AND STRONG
SUPPORT FOR NOTION OF BUILDING
ROBUST COMMUNITY WITHIN
REHABILITATION CENTERED AROUND
NCMRR AND WORKGROUP AND
COMMUNITY NEEDS TO BE ACCESSIBLE
TO A BROAD GROUP OF SCIENTIST
AND FOSTERING GROWTH WITHIN A
COMMUNITY SHOULD REALLY BE A KEY
MISSION AND WE TALKED ABOUT
STRENGTHS OF PREVIOUS K-12
PROGRAMS AND REASONS WHAT THEY
BROUGHT TO THE COMMUNITY MIGHT
BE HARD TO REPLICATE WITH
INDIVIDUAL AWARDS AND WE TALKED
ABOUT ACCESSIBILITY AND IDEA
THAT ONE REASON WE MIGHT SEE A
DROP IN INDIVIDUAL K SUBMISSIONS
IS ONE THING K-12 PROGRAMS CAN
PROVIDE IS A MENTORSHIP NETWORK
SUCCESSFUL TO THOSE WHO DON'T
HAVE KIND OF MENTORSHIP OR DEEP
MENTORSHIP AT THEIR OWN
INSTITUTIONS AND WE TALKED ABOUT
INCREASING ACCESSIBILITY TO
TRAINING PROGRAMS AND DIVERSITY
OF TRAINING POOL AND HOW IT IS
ESSENTIAL FOR THE HEALTH OF OUR
FIELD AND SOMETHING THAT ANY NEW
PROGRAMS SHOULD REALLY HAVE
INTEGRATED WITHIN THEM AND
FINALLY WE TALKED ABOUT RELATIVE
MERITS OF K-12 VERSUS INDIVIDUAL
K AWARDS AND K ANYONE 9R00 AWARD
WAS BROUGHT UP AND PARTICULARLY
ATTRACTIVE AWARD BECAUSE THOSE
ARE ESSENTIALLY PATHWAYS TO
PROFESS ORATE FOR THOSE
INTERESTED IN THE ROUND AND
THOSE ARE MY NOTES.
DON'T KNOW IF ANYONE ELSE HAS
OTHER ITEMS THEY WANT TO BRING
UP OR NOTE FOR THE RECORD BASED
ON OUR DISCUSSIONS YESTERDAY.
>> WHAT IS THE CHARGE OF THE
WORKING GROUP?
IS IT TO MEET EVERY MONTH AND
REPORT ON PEOPLE'S OPINIONS ON
THIS?
I DON'T UNDERSTAND WHAT IT WILL
ACHIEVE, I GUESS.
>> SO, CHARTER OF THE WORKING
GROUP IS MAKING RECOMMENDATIONS
TO THE FULL BOARD THAT CAN
ENDORSE THEM BECAUSE THEY HAVE
RECOMMENDATIONS TO ME THAT IS
HELPFUL WHEN I'M MAKING
DECISIONS THAT I HAVE THE SET OF
RECOMMENDATIONS FROM A GROUP
THAT I REALLY RESPECT AND THAT
IS THE PURPOSE, YEAH.
>> WILL THERE BE DATA AVAILABLE?
IS DATA AVAILABLE IN THINGS
THEY ARE TALKING ABOUT AND WHAT
HAPPENS TO PEOPLE AS THEY ENTER
THE MOOIP LINE?
>> SO, I ENVISION THIS WILL WORK
SIMILAR TO THE WORKING GROUP WE
HELD LAST YEAR TO LOOK AT
INFRASTRUR AND WE PROVIDED DATA
NOT ALL THAT EVERYONE WANTED AND
TALKED ABOUT LIMITATIONS ON DATA
THAT WILL BE ABLE TO HAVE
YESTERDAY AND WE WILL TRY TO GET
AS MUCH DATA AS WE CAN THROUGH
THAT GROUP AND LAST TIME WE
SPENT 3 OR 4 MEETINGS TALKING
ABOUT DATA AND ASKING QUESTIONS
AND GETTING INFORMATION FROM
OTHER FEDERAL AGENCIES WHAT THEY
ARE DOING AND HOW DOES NCMRR FIT
INTO THIS BIGGER ECOSYSTEM AND
WE HAD A COUPLE OF MEETINGS
ABOUT WHICH RECOMMENDATIONS
LOOKED LIKE AND THEY WERE
PRESENTED AT DECEMBER BOARD
MEET
MEETING.
AS MENTIONED, THERE ARE PARALLEL
TRAINING THINGS GOING ON AT THE
SAME TIME AND THEY INTERWEAVE
AND WAITING UNTIL REPORT COMES
OUT ON POST DOCS AND DON'T THINK
WE CAN WAIT AND WHATEVER THEY
SAY WILL PROBABLY INFLUENCE WHAT
WE DO HERE.
I WANT TO MAKE SURE THAT WE ARE
CENTERING REHABS NEEDS IN THIS
BIGGER PICTURE OF TRAINING AND
CAREER DEVELOPMENT.
>> I WANT TO ADD TO THE REPORT.
I THOUGHT THAT SOMETHING THAT I
HEARD THAT I WANTED TO STRESS
WITH IS FACT THAT FUNDING FOR
UNDER-REPRESENTED MINORITY
GROUPS ARE REALLY LOW AND ARE
BETTER BUT STILL QUITE LOW.
THERE IS CONFUSION AS TO WHAT
ARE SOME BARRIERS THAT MIGHT BE
PREVENTING THEM FROM
CAPITALIZING ON THIS AND
QUESTIONS WHERE THEY MIGHT COME
FROM IF WE CAN'T GET THOSE TYPES
OF INFORMATION UNDERSTANDING
BARRIERS AND LACK OF MENTORS OR
LACK OF ACCESS TO MENTORS SINCE
MENTOR AWARDS REQUIRE THAT AND
BARRIERS AND UNDERSTANDING WHAT
THESE THINGS OR BARRIERS WERE SO
THAT, THAT POOL OF POST DOCS
COULD BE ALSO MAYBE A FOCUS OF
OVERALL KIND OF IMPROVEMENT.
>> THERE IS LITERATURE ON THAT
FOR STEM IN GENERAL OR
BIOMEDICAL THAT WE CAN DRAW FROM
AND DON'T KNOW WE HAVE TO DO A
REPEAT OF THAT FOR REHAB AND
THINK WE CAN LEVERAGE ON THINGS
WE ALREADY KNOW AND PULL ON
RESOURCES FOR THE GROUP TO LOOK
AT.
>> THEN MICHELLE.
>> IF YOU WOULD LIKE TO
VOLUNTEER LET ME KNOW OR IN
E-MAIL LATER AND I HAVE GOTTEN
ALREADY E-MAILS AND HOWEVER I
APPRECIATE YOUR TIME IN THIS. I
REALIZE IT IS A LOT. I THANK
Y
YOU.
>> ARE YOU IN?
>> YEAH.
>> OKAY. I SEE BOB AND MICHELLE
AND BARBARA. DILLON HAS
VOLUNTEERED.
>> YEAH. SOME ON ZOOM.
>> OKAY.
>> >> OKAY. I HAVE A QUESTION.
IF WE WERE ACCEPTING THE FACT
THAT IT IS TRAINING PROGRAMS
THAT ARE NOT A PIPELINE, WHAT IS
THE MESSAGE OF THE MISSION OR
GOAL FOR THESE TRAINING
PROGRAMS?
I MEAN, HOW ARE YOU GOING TO
SELL THEM? THEY ARE NOT BEING
SOLD AS A PIPELINE. IT HAS TO
BE A MESSAGE THAT WE HAVE TO
KEEP OUR STUDIES GOING; RIGHT?
WHAT IS THE MESSAGE GOING OUT.
>> SO, WHAT IS THE OUTCOME OF
TRAINING IS ALWAYS THE PERPETUAL
QUESTION, I THINK. IT IS
SOMETHING I HAVE STRUGGLED WITH
EVERY SINGLE WORKING GROUP ON
THIS AND THINK THAT THE GROUP
HAS TO COME UP WITH A WORKING
DEFINITION OF SUCCESS THAT IS
SUFFICIENT FOR THEM.
AND IT -- IT -- I DON'T WANT TO
HAVE BIAS WITH WHAT THAT GROUP
COMES UP WITH. I DON'T THINK WE
CAN SAY THAT WE DON'T HAVE VALUE
IN OUR TRAINING PROGRAMS.
ONLY HALF OF THE PEOPLE THAT USE
THEM AND PEOPLE THAT ARE R01S
ARE ALSO INVOLVED IN T32
SEMINARS AND INFRASTRUCTURE AND
MAY NOT PAY OFF T32 BUT KNOW
GRAD STUDENTS ARE INVOLVED IN
THEM AND IF KNOW IT IS MESSY I
WOULD SAY BUT DON'T THINK
OUTCOME WOULD BE THIS IS
IRRELEVANT AND WE DON'T NEED IT
AND PUT EVERYTHING IN R01S AND
FEED PEOPLE TO THE WOLVES.
>> I ALSO THINK I HAVE NOT SEEN
STUDIES AND HEARD DATA
REFERENCED TWICE AND WAY THEY
DESCRIBED THAT IS DEFINITION OF
THE PIPELINE IS TOO NARROW
THINKING OF MY OWN CAREER AND
MANY PEOPLE HERE HAVE BOUNCED
FROM TRAINING PROGRAMS AT THE VA
TO NIH TO NSF AND ALL THOSE HAVE
BEEN HELPFUL AND MIGHT LOOK LIKE
I'M NOT PART OF THE PIPELINE BUT
I AM REALLY AND IT IS A BIGGER
PIPELINE THAT PEOPLE ARE
CURRENTLY LOOKING AT.
>> [INDISCERNIBLE].
>> >> UH-HUH.
>> THERESA HELLO?
>> SAVE ME, FRANCISCO.
>> YES.
JUST MAKING SURE YOU HEARD I
WANTED VOLUNTEER, ONE. THE
OTHER IS THE ELIGIBILITY ISSUE
AND WE DISCUSSED MENTORSHIP
ISSUE AND ELIGIBILITY ISSUE IN
TERMS OF LEGAL STATUS IN THE US
COULD BE A HUGE DISTORTION THERE
BECAUSE WHEN WE ASK ABOUT OUR
GRANTEES, WHAT IS THEIR
CITIZENSHIP STATUS OR
ELIGIBILITY STATUS THAT MAY BE
THE CASE LIKE MYSELF. RIGHT?
I WAS NOT ELIGIBLE FOR ANY OF
THE MECHANISMS.
FELIX FOUND A WAY TO FUND ME AND
THEN I CAME OUT FROM THE COLD AS
IT WERE BECAUSE R01S DID NOT
REQUIRE ME TO BE A PERMANENT
RESIDENT. THINGS OF THAT SORT
WOULD BE VERY INTERESTING TO
LOOK INTO.
>> I WAS ALSO THINKING ABOUT MY
OWN EXPERIENCE AND CAME FROM
BASIC RESEARCH TRADITION THAT
WAS KIND OF A VERY
ENTREPRENEURIAL TAKEOVER.
YOU ARE IN COMPETITION WITH YOUR
MENTOR AND GOAL IS ALWAYS YOU
SHOULD BECOME AN INDEPENDENT
RESEARCHER AND NOW RESEARCH IS
MORE COLLABORATIVE AND SHOULD
HAVE PEOPLE THAT COME IN THAT
ARE NOT PEOPLE THAT GENERATE
GRANTS THAT IS VERY SUPPORTIVE
AND IS DOING AN INTERVENTION AND
ASSESSMENT AND HELPING SOMEONE
WITH A CLINICAL BACKGROUND WHO
DOESN'T HAVE BAND WIDTH AND
INTEREST IN BEING A PI.
MAYBE WE SHOULD THINK MORE ABOUT
ANCILLARY SUPPORT WHERE TRAINING
PEOPLE WHO CAN BE COLLABORATIVE
TO STUDIES AND DON'T ALWAYS
THINK ABOUT THEM AS THEY HAVE TO
BE PI.
I THINK THAT IS IMPORTANT FOR
INDIVIDUAL BOARDS WHERE SOMEONE
IS HONEST I DON'T WANT TO BE A
PI IN ACADEMIA THEY ARE CLEARLY
BEING REVIEWED BY PANELS AND
SHOULD BE DISCUSSED AT EVERY
STAGE.
>> UNIVERSITY INFRASTRUCTURE FOR
CONTINUED CAR EAR FOR SOMEBODY
WHO WANTS TO FUNCTION IN THAT
CAPACITY. SORRY UNIVERSITY
INFRASTRUCTURE FOR, YOU KNOW,
SOMEBODY WHO DOESN'T WANT TO BE
A PI BUT COULD BE VALUABLE IN
THE PROCESS IS UNNORTNATELY NOT
THERE.
>> WE HAVE SEEN EXAMPLES OF
PEOPLE WHO ARE MOST PRODUCTIVE
BEING A JUNIOR LIEUTENANT OR
SUPPORTING BEING A POST DOC AND
RUNNING A LAB TAKING OTHER
SKILLS AND BAND WIDTH AND THEY
CAN'T MAKE IT.
>> IF ANY ARE IMPORTANT -- TEAM
SCIENCE TO BE ADDRESSED
DIRECTLY. SO, I THINK IT DOES
THAT FROM THE UNIVERSITY SIDE.
AND FROM THE TRAINING SIDE.
>> WE ARE NOT ONLY PEOPLE GIVING
THOUGHT TO THIS TOPIC IN NIH.
I'M WONDERING IF THE NEXT
MEETING WE COULD HAVE THE
THOUGHTS OF OTHERS THAT ARE
INVOLVED AND FROM ELSEWHERE.
YOU KNOW?
VERSUS WORKING IN A SILO.
>> DID DELL FIN PUT YOU UP TO
THAT? HE WROTE ME A BIG LONG
NOTE YESTERDAY THAT PEOPLE FROM
NIDE TO TALK ABOUT.
>> HE PAID ME.
>> I PUT TWO CHECKS NEXT TO THE
SUGGESTION.
AND WE CAN THINK ABOUT WHO WOULD
BE BEST TO DO. THAT THANK YOU.
>> AS MUCH AS JUST TO GET
DISCUSSION GOING AND NO THE TO
SAY WHAT IS RIGHT OR WRONG. IT
IS ALL TALK; RIGHT?
>> YEAH.
>> ANY FINAL COMMENTS OR
VOLUNTEERS?
>> ALL RIGHT. THANK YOU.
NOW WE WILL MOVE TO A CONCEPT
CLEARANCE.
JOE?
>> ALL RIGHT. TO GIVE
BACKGROUND FOR THIS, IS -- ARE
THE FORMAL [INDISCERNIBLE] OF
NIH IS WHENEVER THERE IS A
REQUEST FOR APPLICATIONS, WE
NEED TO CLEAR IT BY A -- SOME
SORT OF A BOARD COUNSELING OR
WHATEVER.
WE HAVE ADVANTAGE SINCE WE HAVE
YOU FOLKS AS BRIGHT PEOPLE WE
KNOW REHAB AND WE CAN -- CENTERS
CAN CLEAR SOME CONCEPTS BY YOU.
THIS IS A LITTLE BIT OF A
STRANGE PROCESS THAT WE HAVE
PURPOSOUSLY SAY INSIDE TRACKS
AND PEOPLE IN THE MEETING AND
YOU FOLKS COULD ACTUALLY APPLY
AND WE HAVE TO DISCUSS IN VERY
BROAD TERMS AND OWE ERNL THING
IS IT IS UP TO OUR SPECIALTY IS
UNDERSTANDING MECHANISMS AND
DETAIL AND LEAVE IT TO US
ANYWAY.
WE ARE LOOKING AND PUTTING THIS
TO YOU IN A VERY BROAD WAY AND
LOOKING IN RESPONSE AND AFTER
DISCUSSION THERE IS THREE
OPTIONS AND YOU COULD SAY WE
ACCEPT CONCEPT AS PRESENTED AND
YOU ACCEPT IT WITH SIGNIFICANT
MODIFICATIONS OR THAT THE
PROPOSAL INITIATIVE SHOULDN'T BE
PURSUED.
OKAY?
JOE WILL PRESENT SOMETHING THAT
IS VERY -- GO AHEAD, JOE.
>> THANK YOU, EVERYONE. I'M JOE
BONNER AND PROGRAM OFFICER WITH
NCMRR AND CONCEPT I'M PRESENTING
TODAY IS FOR MEDICAL
REHABILITATION RESEARCH AND
RESOURCE CENTERS AND CONCEPT --
INFRASTRUCTURE AND ALSO
RESPONDING TO EVOLVING NEEDS OF
REHABILITATION RESEARCH
COMMUNITY AND WE ARE PROPOSING
AN RFA ENTITLED MEDICAL
REHABILITATION RESOURCE CENTERS
SOLICITING APPLICATIONS UNDER A
P MECHANISM AND PURPOSE OF THE
PROPOSED RFA IS STIMULATING
FOUNDATIONAL AND IMPACTFUL
REHABILITATION RESEARCH
PROVIDING SPECIALIZE REED
SOURCES HANDS ON TRAINING PILOT
FUNDING AND OTHER
INFRASTRUCTURE.
ARE. FA WILL SOLICIT
APPLICATIONS ACROSS THE RANGE OF
MEDICAL REHABILITATION RESEARCH
AND RESULTING NETWORK WILL
RESEARCH NEW METHODS TOOLS PILOT
FUNDING IMPLEMENTING NECESSARY
TO MOVE REHABILITATION RESEARCH
FORWARD AND RFA WILL HIGHLIGHT
AREAS OF INTEREST TO NIH AND
ALLOW INVESTIGATOR INITIATIVE
TOPICS AND RFA WILL REQUIRE
COOPERATION OF PEOPLE WITH LIVED
EXPERIENCE AND REHABILITATION
AND RESOURCE CENTERS AND LIVED
EXPERIENCE WILL BE DEFINED BY
APPLICATIONS.
OTHER NIH INSTITUTES AND CENTERS
MAY HAVE INTEREST IN SUPPORTING
MEDICAL REHABILITATION RESEARCH
INFRASTRUCTURE AND NCMRR WILL
WORK TO INCORPORATE NIH
INSTITUTES AND CENTERS INTO THE
PROGRAM.
OBJECTIVES OF RFA IS TO PROMOTE
IMPACTFUL REHABILITATION
RESEARCH ACROSS DISCIPLINARY
COLLABORATION IN MEDICAL
REHABILITATION RESEARCH
SUPPORTING RESEARCH
INFRASTRUCTURE WILL AID
RECRUITMENT RESEARCHERS TO --
MEASURES OF THE NETWORK WILL BE
RESEARCH OUTPUT AND
REHABILITATION DATA SET
PRODUCTION AND USE AND REUSE AND
TRAINING INTERACTIONS AND SERIES
APPLICATIONS DIRECT TODAY NIH IN
FIELD OF MEDICAL REHABILITATION
RESEARCH. AT THIS POINT, DOES
ANYONE HAVE QUESTIONS ABOUT THE
CONCEPTS?
>> SORRY THE IDEA OF THE GOAL.
I MEAN, YOU -- NOT HAVING THIS,
JUST LEAVING THINGS THE WAY THEY
ARE AND LETTING PEOPLE CONDUCT
REHABILITATION RESEARCH THROUGH
MECHANISMS IS WHAT I'M TRYING TO
CONTRAST IT WITH. IT LOOKS LIKE
THIS HAS TO DO WITH EXPANDING
RECRUITING AND EXPANDING
REHABILITATION WORK AND
RESEARCHERS AND ALSO
FACILITATING INTERDISCIPLINARY
REHABILITATION RESEARCH. IS
THAT WHAT IS UNIQUE FOR THAT?
>> IT IS CONTINUING THE NCMRR'S
CURRENT INVESTMENT IN
INFRASTRUCTURE THAT, THAT IS THE
PROBLEM THAT HAS EXISTED AND HAS
CHANGED OVER THE 20 YEARS AND
ALSO TAKING INTO ACCOUNT WHAT WE
HAVE HEARD FROM COMMUNITY AND
FROM THIS BOARD AND SORT OF
INCORPO
INCORPORATING THOSE COMMENTS
INTO THE DEVELOPMENT OF THE
CONCEPT.
YOU KNOW, TAKING IN THAT --
TAKING INPUT INTO ACCOUNT WE ARE
SHIFTING FOCUS SOMEWHAT OF THE
NETWORK TO TRY TO STAY VAGUE
HERE.
TO YOU KNOW MAYBE PUT IMPACT OF
THE RESEARCH AT FUNDS THAT ARE
--
>> IF YOU ARE ALSO ASKING, IT IS
A 0-SOME GAME AND WE HAVE A
CERTAIN AMOUNT TO SPEND AND
QUESTION THAT DO YOU WANT TO
PRIORITIZE A LITTLE OF THAT FOR
REINFRASTRUCTURE OPPOSED TO
WORKING ON INVESTIGATOR
INITIATIVE PAY LINE AND BROADER
COMPETITION THAT IS PRIORITIZING
INFRASTRUCTURE?
>> IS THIS JUST TO CLARIFY IS
THIS ANOTHER MR3 NETWORK?
WOULD THAT BE [INDISCERNIBLE].
>> YES.
>> IT WOULD BE NEXT CENTER AND
TYPE OF CENTER?
>> THE GROUP IS FINISHING UP.
>> GOT IT.
>> THIS WOULD BE THE NEXT.
>> WE ISSUE THIS NETWORK THROUGH
RFA AND EVERY TIME RFA HAS TO BE
ISSUED WE HAVE TO COME BACK
GETTING APPROVAL FOR A NEW
PROJECT.
>> COMPARE AND CONTRAST THESE.
>> JUST A CAUTIONARY THINKING ON
MY PART.
I HAVE CONCERN THAT WILL BE
PERPETUATING THE SAME AND WHAT
WE DO TO ATTRACT NEW VOICES AND
CENTERS BECAUSE THERE IS A
CERTAIN LEVEL OF FRUSTRATION
THAT EXISTS NOT SAYING IN THIS
MODEL BUT LIGHT MODELS -- AND
GOOD LUCK ABSOLUTELY.
>> IN PREVIOUS ITERATIONS, THERE
ARE -- THERE HAS ALWAYS BEEN
REQUIREMENTS THAT CENTERS COULD
ONLY HAVE TWO CYCLES OF FUNDING.
AND THEN THEIR SUN SET AND SORT
OF HISTORICALLY WE HAVE HAD
TURNOVER IN OUR [INDISCERNIBLE].
>> FRANCISCO?
>> YES. SORRY I WAS ALSO
CONCERNED ABOUT STEVENS POINT
ABOUT WHO ARE LIKELY SUCCESSFUL
APPLICANTS TO THIS AND WILL IT
PROMOTE OR HINDER NOT ONLY
DIVERSITY IN GENERAL BUT
DISTRIBUTION OF FUNDS ACROSS THE
ENTIRE COMMUNITY.
BECAUSE SUCCESSFUL CENTERS THEY
DON'T LAST VERY LONG AND I
WONDER WHAT DATA IS IN TERMS OF
THEM PERPETUATING NUKE LEEATION
OF OPPORTUNITY OPPOSED TO
DISTRIBUTION.
FOR EXAMPLE, YESTERDAY, RALPH
MENTIONED THE GEOGRAPHIC, NEED
FOR GEOGRAPHIC DISTRIBUTION FOR
ACTIVITY THAT TENDS TO BE
CLUSTERED AND, YOU KNOW, JUST
SOMETHING TO THINK ABOUT.
>> ANY OTHER COMMENTS OR
QUESTIONS?
>> HI. THANKS. I WANTED TO
CLARIFY THE COMMENT. PURPOSE OF
THIS IS REALLY THE NEXT
GENERATION ITERATION OF MR3
NETWORK. IS THAT RIGHT SETTING
UP SOMETHING SIMILAR OR IN BROAD
STROKE SGLZ BROAD STROKES.
>> OKAY.
>> THANK YOU, ERIC.
SEEMS TO ME THAT THIS MIGHT BE
AN OPPORTUNITY TO ENGAGE ALSO
INDUSTRY.
AND I DON'T SEE THAT HERE ON
SCOPE.
MAYBE THIS IS THE DETAILS BUT
ONLY THEY CAN PROVIDE SOURCES
AND ACCELERATE TRANSLATION AND
ALSO A GOOD PATHWAY FOR
CONSTRAINING STUDENTS AND POST
DOCS AND GOING TO INDUSTRY FOR
INTERNSHIP AND COMING BACK AND
THAT COULD BE HARNESSED FROM
COLLABORA
COLLABORATION.
INDUSTRY WOULD BE CORE PART OF
THE CENTER. THANK YOU.
>> WE TRY TO -- WE SAY WE TRY NO
THE TO GET INTO SPECIFIC TOPICS
KEY THING IS IDENTIFYING SOME
TOPICS AND WILL BE OPTIONS FOR
INVESTIGATORS TO HAVE OWN
CONCEPTS AND TACKLING THEIR OWN
PROBLEMS AND A CENTER OF THAT
NATURE WOULD SIT IN THE SCOPE OF
WHAT NIH FUNDS.
>> I'M SAYING THAT IS CRITICAL
THAT I SUGGEST THAT THIS SHOULD
BE PART OF THE DESIGN.
YOU KNOW?
SO, I CAN SEE PEOPLE THINKING
ABOUT IT. IT IS CRITICAL TO
CONNECT THIS WORK AND SUGGESTION
IS CONSIDERING CORE ASPECT OF
THIS RESOURCE CENTER.
>> THANK YOU.
>> SO SH, TOO STUPID TO REALIZE
THIS HAD TO DO WITH EXISTING MR3
NETWORK READING THIS AND GUESS
THERE IS POLITICAL REASON YOU
CAN'T TALK EXPLICITLY ABOUT THAT
BUT TALKING IN GENERAL TERMS
ABOUT WHAT NETWORK PROVIDED TO
THE FIELD.
>> YEAH.
>> YEAH. I THINK WE HAVE HAD
DISCUSSIONS ABOUT THAT.
THIS IS SORT OF A CULMINATION OF
THOSE DISCUSSIONS.
WANT TO ADD ANYTHING?
>> WORKING GROUP WITH YOU ALL IN
IT FOR SIX MONTHS LAST YEAR AND
REPORT OUT IN DECEMBER.
WE TOOK RECOMMENDATIONS AND
RECOMMENDATION WAS THIS IS
REALLY IMPORTANT AND WE NEED TO
DO IT.
NOW, WE ARE COMING BACK TO YOU
FOR THE FINAL STAMP THAT WE CAN
CONTINUE WITH THE PROGRAM.
>> ANYONE HAVE FINAL COMMENTS OR
INFORMATION THEY WOULD LIKE TO
PASS TO JOE?
>> TO CLARIFY, INCORPORATION OF
PEOPLE WITH LIVED EXPERIENCE AND
GIVEN CONVERSATIONS WE HAVE FOR
IMPLEMENTATION SCIENCE IS THAT,
THAT FLAVOR THAT YOU MEANT WHEN
YOU SAID THAT? PARTICIPATORY
TYPE.
>> SURE. REALLY DEPENDS ON THE
APPLICATION.
>> OKAY.
>> SOMETHING FOR APPLICANT TO
DETERMINE WHAT TYPE OF FUNDING
EXPERIENCE AND HOW TO
INCORPORATE IT.
>> THANK YOU.
>> OKAY. WITH THAT, I WOULD
LIKE TO MOVE TOWARDS VOTING.
SO, LET'S ASSUME THAT WE HAVE
MADE RECOMMENDATIONS AND JOE YOU
WILL INCORPORATE THEM INTO THE
FINAL VERSION.
>> UH-HUH.
>> OKAY. WITH THAT I WOULD LIKE
TO VOTE AS TO WHETHER WE ACCEPT
AS-IS OR ACCEPT WITH THE
DISCUSSION THAT WE JUST HAD
WHERE WE REJECT THIS CONCEPT
PROPOSAL.
ALL IN FAVOR OF ACCEPTING,
HANDS.
>> I WOULD LIKE TO ACCEPT WITH
[INDISCERNIBLE].
>> WITH AMADS, EXACTLY. ANYONE
OPPOSED?
OKAY. THIS IS APPROVED.
>> THOSE ONLINE, PLEASE RAISE OR
LOWER YOUR THUMB.
>> GREAT. THANK YOU.
>> ALL RIGHT. AGAIN, AS WE HAVE
TO SAY GOOD-BYE TO TWO MORE OF
OUR MEMBERS, STEPHANIE AND
[INDISCERNIBLE]. I WILL LET
STEPHANIE GO FIRST. ERIC, I
HAVE TO GIVE A SPECIAL HUG. HE
FEATURED US SO.
I WANT TO GIVE STEPHANIE A
CHANCE. WE APPRECIATE HER
COMMENTS FROM DIFFERENT ANGLES.
YOU BROUGHT A LOT OF -- YOU
REALLY HELPED OUR DISCUSSIONS
AND WANT TO GIVE YOU A CHANCE TO
MAKE YOUR PARTING COMMENTS AND
WHAT YOU APPRECIATE ABOUT THEM
AND MESSAGES YOU WANT TO LEAVE
TO YOUR COLLEAGUES.
>> FIRST OF ALL, THANKS SO MUCH.
I ALWAYS FORGET THE MIC. NEVER
FORGET T THAT IS FIRST
RECOMMENDATION. I ALWAYS FORGET
THE MIC. I WANT TO MAINLY THANK
YOU ALL FOR ALLOWING ME TO
PARTICIPATE. IT IS INCREDIBLE.
I LEARNED A LOT AND HOPE I
CONTRIBUTED A LITTLE.
SO, I THINK THAT I LEARNED MUCH
MORE THAN I CONTRIBUTED.
I'M THANKFUL FOR THE
OPPORTUNITY.
THAT WAS VERY IMPORTANT. I
THINK THAT ONE OF THE THINGS
THAT I WOULD SAY TO EVERYONE,
RALPH MENTIONED THAT I COMMENTED
A LOT, I GUESS.
I THINK IT IS A GOOD THING.
I THINK IT IS SOMETHING THAT
LOTS OF PEOPLE COME TO THESE
TYPES OF PROCESSES.
THEY WAIT BEFORE THEY COMMENT
AND INTERACT.
WE WILL GET MORE OUT OF IT. IF
YOU STEP INTO THE SPACE. IF YOU
STEP INTO IT. AND HAVE YOUR
VOICES HEARD.
YOU ARE HERE FOR A REASON.
ARE YOU HERE TO -- TO ADD TO THE
CONVERSATION. DON'T BE SHY
ABOUT ADDING TO THE CONVERSATION
IS REALLY THE POINT.
I ALSO HAVE ON THAT END THAT I
WANT TO SAY THAT I HAVE BEEN
INVOLVED WITH OTHER TYPES OF
BOARDS THAT WERE LESS RESPONSIVE
TO -- OR THE LEADERSHIP WAS LESS
RESPONSIVE TO RECOMMENDATIONS.
I WANT TO APPLAUD YOU ALL FOR
REALLY HEARING WHAT WE HAD TO
SAY. I REALLY SAW THAT
CONSISTENTLY ACROSS MY TENURE IN
THIS PROCESS.
SO, I'M VERY GRATEFUL TO HAVE
BEEN PART OF IT ALL.
AND BEYOND RAISING YOUR VOICES
AND THINKING BROADLY ACROSS THE
ISSUES.
I THINK THAT IS THE TWO MAIN
THINGS. I WILL LEAD PEDIATRIC
REPRESENTATION IN HANDS OF WADE.
I SAID TO HIM CAN'T LET IT GET
LOST IN THE BREAK AND OVERT
OMISSION AND IT SOMETIMES BRINGS
UNIQUE CHALLENGES TO REHAB
ILLTATION THAT NEED TO BE
BROUGHT UP. I'M VERY GRATEFUL.
I HAVE ENJOYED WORKING WITH ALL
OF YOU AND AS SAID EARLIER, IF
ANYTHING I CAN EVER DO I WOULD
BE DELIGHTED TO DO THAT.
THANK YOU!
>> TO OUR CHAIR, I APPRECIATE
THE GRACEFUL WAY THAT HE JUMPED
IN THERE.
INCREDIBLE EXECUTIVE SKILLS IN
KEEPING US GOING.
WAY THAT HE POWERED ALL OF YOU
FOLKS APPRECIATE HIS SCIENTIFIC
CAREER AND ADVICE AND A CHANCE
TO [INDISCERNIBLE].
>> GREAT. THANK ALL OF YOU AND
STARTING WITH A SPECIAL THANK
YOU TO THERESA AND RALPH FOR
INVITING ME TO BE ON THE BOARD.
I HONESTLY DIDN'T KNOW WHAT I
WAS GETTING INTO. IT WAS REALLY
A PLEASURE. I'M SOMEONE WHO MAY
OR MAY NOT BE A DATAPO INT IN
THAT PIPELINE AND BENEFITS FROM
T AWARD AND K AWARD AND
EVENTUALLY AN R01 AND THROUGHOUT
THAT ONE KEY REASON I WAS ABLE
TO BE SUCCESSFUL WAS SUPPORT
FROM NCMRR AND LEADERSHIP AND
PEOPLE QUITE A FEW YEARS AHEAD
OF ME AT THE TIME THAT IS
SOMETHING NEAR AND DEAR TO MY
HEART AND HAPPY TO BE PART OF
THE BOARD IN HOPES WE CAN
MAINTAIN COMMUNITY WE TALKED
ABOUT SO STRONGLY YESTERDAY.
AND IN TERMS OF ADVICE, I GUESS,
ENJOY YOUR TIME HERE. I ENJOYED
JOINING THE BOARD WHEN I CAME.
A FEW PEOPLE WERE LONG-TIME
FRIENDS AND I MADE MANY MORE AND
NICE TO SEE MORE FRIENDS JOIN
THE BOARD OVER THE COURSE OF MY
TIME AND MORE PEOPLE I DIDN'T
KNOW THAT I NOW CONSIDER FRIENDS
AND FRIEND TO ME IS SOMEONE I
CAN ENJOY TIME WITH WHEN GOING
OUT FOR DINNER IN THE EVENINGS
AND ENJOY INTELLECTUAL DISCOURSE
AND DIFFERENCE OF VIEWPOINTS OF
EVERYONE ON THE BOARD IS AN
EDUCATIONAL EXPERIENCE FOR ME
AND HEARTENS ME IN TERMS OF NCMR
IS IN GREAT HANDS AND STEPHANIE
BROUGHT OUT THAT VOICES ARE
LISTENED TO AND ENJOY THAT
EVERYONE HAS BEEN INCREDIBLY
PARTICIPATORY OVER THE LAST
COUPLE DAYS AND ENCOURAGE YOU TO
KEEP DOING THAT.
WE HAVE GREAT LEADERS THAT WILL
LISTEN AND RESPOND TO YOU.
TAKE ADVANTAGE OF THAT. SO,
THANKS FOR YOUR TIME.
>> AT THIS POINT NEWLY ELECTED
CHAIR BARBARA IS TAKING OVER AS
LEADERSHIP AND FIRST ORDER OF
BUSINESS FOR HER AND LAST TO
ERIC IS WHAT DO YOU FOLKS WANT
FOR THE DECEMBER MEETING AND
BEYOND AND WANT TO WELCOME IDEAS
YOU HAVE FOR TOPICS AND THINGS
BOILING UP HERE AND THAT YOU
WANT TO HEAR MORE ABOUT AND HOW
YOU WANT THAT PRESENTED WHO WILL
BE GOOD SPEAKERS AND I WILL LET
BARBARA LEAD THAT DISCUSSION.
>> THANK YOU. BEFORE WE GET TO
THAT THANK YOU TO STA STEPHANIE
AND ERIC AND YOU HAVE BEEN
TREMENDOUS AND GRATEFUL YOU ALL
SAID YOU WOULD BEL TO BE CON
CONTAC
CONTACTED. SXEBLTH TO HEAR FROM
US.
STARTING WITH IDEAS YOU HAVE
FROM TOPICS YOU WOULD LIKE TO
ADDRESS IN THE NEXT DECEMBER
MEETING.
INJURY REHAB WHETHER IT IS
MILITARY OR ACCIDENT.
>> I THINK IT IS A GREAT POINT.
CAN I ASK HOW YOU WOULD WANT
THAT DISCUSSION AND MORE USEFUL
INFORMATION WITHIN THAT
DISCUSSION?
>> SAME AS WE COVERED WITH THE
OTHERS; RIGHT?
WHAT IS FUNDING AND HOW DOES IT
COMPARE TO OTHER TOPICS AND WHAT
IS THE DEMOGRAPHICS?
IT IS VOLUME.
NOTHING SURPRISING AND NO I
DON'T HAVE A GOOD PERSON TO
SPEAK ON THAT. I WOULD NOT
KNOW.
BUT MY GUESS IS LOTS OF REHAB
OUT THERE COVERS THOSE TYPES OF
TOPICS AND ONCE THERE IS
PENETRATION THERE SO-TO-SPEAK.
>> ADDING TO THAT POINT, I
THINK, LOOKING AT RELATIONSHIPS
BETWEEN CLINICAL VOLUME AND
RESEARCH DOLLARS WOULD BE VERY
INTERESTING.
>> THANK YOU.
>> I KNOW WE ARE TALKING ABOUT
BRINGING IN PERSONS WITH LIVED
EXPERIENCES TO BE PART OF OUR
RESEARCH PROGRAMS AND AGENDA I
THINK. WE TALKED A LITTLE ABOUT
KNOWLEDGE TRANSLATION TODAY AND
ABOUT HOW TO GET INFORMATION TO
THE XHOO UNITIES AND THINGS AND
I THINK THAT BRINGING IN SOMEONE
WHO HAS HAD EXPERT SUCCESS IN
DOING THAT AND BEING ABLE TO
PROVIDE PRACTICAL APPLICATIONS
HOW TO REALLY BRING IN PERSONS
WITH LIVED EXPERIENCE TO
RESEARCH AGENDA IS
[INDISCERNIBLE].
>> YEAH. I WANT TO ECHO THAT.
I WAS JUST THINKING ABOUT REALLY
INTERESTING FOR CENTERS LIKE
IMPACT, ET CETERA AND THINKING
THROUGH LIKE GOING TO THAT NEXT
LEVEL THAT FEELS LIKE THIS WAVE
IS TOWARDS THAT, YOU KNOW?
REALLY MAKING YOUR RESEARCH
COUNT AND ECHOING THAT NEED FOR
MORE PRACTICAL EXAMPLES.
AS AN ENGINEERING, I WANT TO
UNDERSTAND A LITTLE WHEN
TECHNOLOGY IS IN THE MIX, WHAT
DOES IT LOOK LIKE?
MAYBE IMPACT CENTER OR ONE OF
THE CENTERS OR ONE OF THESE MRV
CORRECT
CENTERS THERE IS ONE ON
TECHNOLOGY AND OTHERS TO TALK
ABOUT THAT.
>> I SHOULD ADD WE HAVE A FEW
R25 PROGRAMS WHERE THERE IS
SPECIFICALLY INVOLVING TAKING
ENGINEERS THAT ARE WELL-MEANING
AND OVER ENGINEERING THINGS AND
HAVING THEM CONNECT PEOPLE WITH
LIVED EXPERIENCES THAT MAKES
THEM UNDERSTAND REAL NEEDS HOW
TO SCALE IT BACK AND MAKE IT
MORE. OKAY. WHAT WE HAVE HERE.
>> OTHER COMMENT SGLZ FRANCISCO?
>> THANK YOU, ERIC AND FORYOUR
SERVICE AS CHAIR. IT HAS BEEN A
PLEASURE TO WORK WITH YOU. YOU
HAVE CATALYZED A LOT OF GOOD
STUFF AND IN RELATION TO WHAT IS
NE
NEXT, I WAS REALLY PLEASED AND
HAPPY TO SEE THE TRANSLATION
PART HIGHLIGHTED TODAY.
IT IS REALLY IF NOT THE CORE, IT
IS THE DELIVERABLE.
IT IS OF A LOT OF WHAT WE DO.
I THOUGHT IT WOULD BE USEFUL TO
DISCUSS HOW WE COMPARE RESEARCH
SCIENTISTS AND MISSION STATEMENT
OF THE NIH IS FUNDAMENTAL
MECHANISMS FROM FUNDAMENTAL
SOLUTIONS; RIGHT?
THAT IS IN OUR FIELD FAR FROM
THE [INDISCERNIBLE] AND THOSE
THAT HAVE EXPERIENCE WOULD SAY
ESBIR MECHANISMS AND THE LIKE,
WE ARE CONFRONTED WITH THE NEED
TO ACTUALLY TRANSLATE REAL
PROCESSES AND REAL FINDINGS TO
THE USER.
SO, HOW CAN -- I MEAN, THE --
THE REALITY IS THAT NOT EVERYONE
IS GOOD AT EVERYTHING.
IF YOU COULD BE VERY GOOD AT
BASIC SCIENCE AND NOT GOOD AT
TRANSLATING THAT KNOWLEDGE.
WHAT CAN WE DO? FROM THE NCMRR
PERSPECTIVE TO TRAIN AND BRING
TOGETHER AND MAKE PEOPLE AWARE
OF THE LONG ROAD. CAN WE
SOMEHOW FIND A WAY ENCOURAGE
PEOPLE BY TEAM BUILDING OR
COLLABORATIVE BRANCH OR
SOMETHING THAT LEVERAGES WHAT
PEOPLE ARE ALREADY DOING IN A
WAY THAT WILL ACCELERATE THAT
TRANSLATION?
I THOUGHT IT WAS WONDERFUL WHAT
WE HEARD TODAY IN TERMS OF
KNOWLEDGE TRANSLATION AND IF WE
COULD ONLY LEARN LESSONS AND
BRIDGE 7 TA ENYEARS THAT WOULD
BE GREAT.
>> EXCELLENT POINT TO TRAIN
RESEARCHERS AND APPLICATIONS.
>> WONDER IF YOU HAVE PARTICULAR
SUGGESTIONS FOR THOSE THAT COULD
COME TOGETHER WITH US FOR THAT
IF NOT AT TOP OF HEAD FEEL FREE
TO SEND THEM ALONG.
>> >> THIS IS A DIFFERENT TOPIC
IS NIH ACROSS OTHER DISCIPLINES
TACKLING THIS ISSUE OR GETTING 1
OR 2 PEOPLE TO HAVE A DISCUSSION
WITH US ALONG THIS TOPIC LINE.
THIS IS NOT UNIQUE TO US AND
WOULD LIKE TO HEAR HOW OTHERS
ARE CHALLENGING THIS.
>> HELPING ME PUT TOGETHER THE
AGENDA 5 YEARS ORRISH WE HAD
DAVE AND HISSED LAB TRANSLATED
TECHNOLOGY INTO THE FLINT REHAB
COMPANY AND IS THAT STORY YOU
WANT TO HEAR AND DO YOU WANT NIH
OFFICIAL STORY?
>> 18 PRESENTATIONS TODAY, THOSE
THAT DID A WONDERFUL JOB TALK
BEING MODELS AND THEORIES.
>> RESEARCHERS DO A WONDERFUL
JOB OF THAT THIRD PRESENTATION
THERE WAS CASE PRESENTATIONS AND
OTHER PEOPLE IN THE INSTITUTE
AND I'M NOT JUMPING UP AND DOWN
BUT IF I WAS JUMPING UP AND DOWN
I WOULD SAY OMG, 17 YEARS TO GO
FROM ONE TO THE OTHER?
WE ARE THIS FAR INTO MAN'S
EXISTENCE AND DOING THINGS AND
WE ARE THIS FAR INTO HUMAN
EXISTENCE AND HAVING
[INDISCERN
[INDISCERNIBLE].
>> I WANT TO PUSH BACK ON STEVE
FOR A MINUTE REHAB FOO ELD IS
MORE IMPORTANT FOR US AND WE
HAVE CHRONIC SUPPORT AND ISSUES
ARE GETTING MAGNIFIED FOR OUR
POPULATIONS AND OUR RESEARCH.
>> I THINK IN REHABILITATION,
KNOWLEDGE TRANSLATION THAT COMES
OUT OF OUR TRANSLATIONAL AND
INTERVENTION STUDIES IS JUST
THAT. IT IS KNOWLEDGE.
SOMETIMES YOU HAVE SOMETHING
LIKE DEVICES AND LIKE DAVE'S
STORY. DEVICES ARE EASIER TO
THINK ABOUT. IT IS HARD TO
REALLY ENVISION HOW TO GET
KNOWLEDGE TO THEEND USER
WHENNEND USER IS A COMBINATION
AS PEOPLE WHO ARE GOING TO BE
RECEIVING REHABILITATION AND TO
A LARGE DEGREE THE THERAPISTS
AND OT AND PTS AND SPEECH
THERAPISTS AND SO FORTH.
IT WOULD BE GREAT, YOU KNOW, TO
GET EXAMPLES OF THAT IN THE SAME
WAY THAT APPARENTLY THEY DID
WITH REGARD TO THE TYPES OF
DEVICE DEVELOPMENT THAT DAVID IS
DOING.
>> I JUST WANTED TO CLEAR UPTAKE
PART. IT IS KIND OF LIKE, YOU
KNOW, THERE IS A LOT OF
WORK-AROUND GETTING IT OUT SPR
AND IS OTHER SIDE THAT I THINK
IS THE CHALLENGE PART, THE
UPTAKE. YOU KNOW, PEOPLE
TALKING ABOUT THAT PROCESS OF
UPTAKING IT INTO THE HEALTH
SYSTEMS THAT IS THE PART THAT I
THINK IS MORE DIFFICULT.
AND I THINK IT IS THE PART WHERE
WE DON'T EXCEL AT IN TERMS OF
PARTNERSHIPS THAT REQUIRE THE
IMPLEMENTATION AND CHANGING IN
BEHAVIOR AS A RESULT. THE OTHER
POINT THAT I WANTED TO MAKE IS
THAT THERE IS A TOPIC TO SWITCH
A LITTLE, I KNOW THAT LAST
MEETING THAT YOU GUYS HAD WRA
AND WORLD REHAB ASSOCIATION
ALLIANCE.
I AM ACTUALLY REALLY INTERESTED
IN IMPLEMENTATION SCIENCE
CONCEPT BUT ON A GLOBAL SPACE
AND IN LOW RESOURCE SETTINGS
THAT COULD HAPPEN IN THE US AS
WELL AS IN LOW AND MIDDLE INCOME
COUNTRIES AND WOULD BE
INTERESTED IN HEARING FROM FOLKS
WHO HAVE DONE A LOT IN SOME OF
THE ROLES AND BASIS.
>> LET'S TAKE COMMENTS FROM
PEOPLE ON LILINE.
>> ANGELEE?
>> TYPING COMMENT HERE AND HOW
NIDLR INTEGRATED INTO PEER
REVIEW PROCESS AND IS SOMETHING
LIKE THAT HELPFUL OPPOSED TO
CONVERSATION OF ACTUAL DOING OF
TRANSLATION AND SOMETHING THAT
IS HELPFUL NIED LETTER WOULD BE
MORE THAN WILLING TO PROVIDE IT
AT A FUTURE PRESENTATION.
>> THANK YOU.
>> I WOULD LIKE TO PROPOSE A
TOPIC THAT IS CRITICAL FOR
TRAINING AND KNOWLEDGE AND
IMPLEMENTATION AND IT IS TEAM
SCIENCE AND FRANCISCO ELUDE
TODAY THAT AND TRANSLATION AND
COLLABORATION AWARD AND
IMPLEMENTATION TO WORK WE HAVE
TO PAY ATTENTION TO THESE
PARTICULARLY WHEN COMMUNITY IS
PART OF THE TEAM AND HAVE A
COUPLE PUBLICATIONS OF RECENT
PAST ABOUT YOU KNOW WHAT ARE
INGREDIENTS FOR SUCCESSFUL TEAMS
AND PROJECTS AND THINGS LIKE
TH
THAT.
>> I WOULD PROPOSE ADDRESSING
TOPIC TO SEE RESOURCE FOR
REHABILITATION IN TERMS OF
IMPLEMENTATION OF SCIENCE AND
TRAINING AND THAT IS MY
SUGGESTION. THANK YOU.
>> THANK YOU.
>> TOPIC BRINGING BOTH OF THESE
TOGETHER NOT HERE AND TALKING
ABOUT KNOWLEDGE TRANSLATION BUT
HOW ABOUT KNOWLEDGE
ACCELERATION?
YOU CAN'T TRANSLATE IT IF YOU
DON'T HAVE IT. WE LEARNED
THROUGH COVID EXPERIENCE THAT
SCIENCE COULD MOVE FASTER THAN
IT NORMALLY DOES THROUGH RAPID
PROGRAMS AND SO ON AND SO FORTH
AND SOMETHING THAT WE CAN LEARN
FROM THOSE INITIATIVES HOW TO
ACCELERATE KNOWLEDGE DEVELOPMENT
AND ACQUISITION IN OUR FIELD.
>> ANY OTHER THOUGHTS ABOUT
TOPICS?
>> WELL, OVER THE YEARS, OH,
ALLEY BRINGING CMS INTO THE
DISCUSSION. THEY ARE THE PAYERS
AND IT IS A LITTLE AWKWARD.
THEY ARE CONSTRAINED BY SOME
POLITICS AND WOULD IT HELP TO
KIND OF AND DO YOU FOLKS KNOW
AND DO YOU KNOW ANYBODY WHO
WOULD BE GOOD REPRESENTATIVES
FROM THAT?
>> FRANCIS RICHMOND IS FOUNDER
OF PROGRAM AT USC AND LOTS OF
THIS IS ACTUALLY HAVING TO GO
THROUGH THE REGULATORY PROCESS.
SHE HAS WONDERFUL EXPERIENCE IN
UNDERSTANDING THESE
TRANSLATIONAL TEAMS AND
KNOWLEDGE TRANSLATION THAT HAS
TO OFTEN GO THROUGH REGULATORY
PROCESS WITH WHICH MOST OF US
ARE VERY MUCH UNAWARE OF AND
THAT GOES INTO REIMBURSEMENT AND
THE LIKE. SHE HAS A BROAD
PERSPECTIVE HOW TO DO THIS
SUCCESSFULLY.
>> [INDISCERNIBLE].
>> SORRY THAT WAS MY HAND FROM
BEFORE.
>> OKAY.
>> WE HAVE USE OF HIS HAND.
>> IT WOULD BE GREAT TO HAVE CMS
TALK. SO MUCH WHAT WE ARE
TALKING ABOUT INL MREMENTATION
IS EFFECTED DIRECTLY BY CMS
POLICIES AND REIMBURSEMENTS.
>> AND OPPORTUNITY FOR US TO
HAVE OUR VOICE OUT THERE.
>> COGNITIVE ANALYSIS GROUP.
>> [INDISCERNIBLE].
>> YOU KNOW, SERVICES TO BE
VERSED AND RECOMMENDSES
[INDISCERNIBLE].
>> IT WOULD BE INTERESTED TAKING
PERSPECTIVE OF SOMEONE IN CHARGE
OF OUR HEALTH SYSTEM AND THEIR
PERSPECTIVE IN TERMS OF UPTAKE
OF NEW INTERVENTIONS AND
TECHNOLOGY OR WHATEVER IT IS AND
SYSTEMS AND PERSPECTIVES HOW TO
OVERCOME BARRIERS AVEND WHAT
MAKES THEM DECIDE TO GO WITH A
PARTICULAR PROGRAM AND THAT
PERSPECTIVE IS ENLIGHTENING IN A
W
WAY.
>> THAT WAS MINE.
HEALTH SYSTEMS WE SEE AS VERY
NARROW AND THINGS THAT CAUSE
CHANGE ARE OFTEN NOT WHAT WE
ADDRESS IN IMPLEMENTATION
SCIENCE AND PEOPLE IN CONTROL OF
MODELS THAT LOOK AT
REIMBURSEMENT AND POLITICAL
PRESSURES AND THINGS OF THAT
NATURE PLAYING INTO A SYSTEM
THAT WE DON'T HAVE A SEAT AT THE
TABLE AT.
UNDERSTANDING THAT BETTER IS
WHAT IS NEEDED TO MAKE CHANGES.
>> WE HAVE A FOUR-DAY MEETING
PLANNED.
>> THANK YOU. ANY OTHER TOPICS
TO PUT ON THE TABLE?
IF NOT, SWITCHING TO FORMAT.
WE HAVE BEEN ONLINE FOR A VERY
LONG TIME. NOW, WE ARE BACK
HYB
HYBRID.
WHERE DO WE WANT TO BE IN
DECEMBER? HYBRID, IN PERSON,
ONLINE? HAVING ADVANTAGES TO
EACH OF THEM AND PARTICULARLY
WANTING TO HEAR FROM FOLKS
ONLINE AND, YOU KNOW, IF WE DO
HYBRID, HOW CAN WE MAXIMIZE THE
ABILITY FOR INTERACTION ACROSS
THE TABLE?
>> GO AHEAD. [LAUGHING].
>> YES. IN OTHER WORDS IF FOLKS
ON LINE AND PEOPLE HERE HOW DOES
THIS WORK?
IS THAT WHAT YOU ARE ASKING?
>> YES.
>> YEAH.
>> CAN YOU HEAR ME OKAY?
>> YES.
>> YEAH. I TOTALLY AGREE.
WE ARE HAVING THE SAME ISSUES
WITH DEPARTMENTAL MEETINGS.
IN PERSON IS INVARIABLY BEST.
I HAD A SITUATION RECEIVING ONCE
IN A LIFETIME AWARD THAT WAS
SAME DAY AND FOUND OUT ABOUT IT
A MONTH AGO. SOMETIMES PEOPLE
CAN'T PLAN 6 MONTHS AHEAD.
IT HAS BEEN GOOD FOR ME IT HAS
BEEN REMOTE AND NO THE SURE IT
HAS BEEN GOOD FOR THE BOARD,
ACTUALLY, TO HAVE US REMOTE. I
WOULD SAY THAT INSISTING ON IF
AT ALL POSSIBLE BEING THERE IN
PERSON IS THE RIGHT THING TO DO.
NOW, HAVING THE REMOTE MECHANISM
IS, OF COURSE, A LIFESAVER IN A
PINCH. LIFE HAPPENS.
YES. I WOULD JUST SAY TO TRY IF
AT ALL POSSIBLE TO BE THERE IN
PERSON IS MY RECOMMENDATION AND
THEN PEOPLE USE THEIR JUDGMENT
TO USE OR NOT USE THE REMOTE
OPT
OPTION.
>> OTHER THOUGHTS?
>> I THINK IT -- I PERSONALLY
LIKE THE -- BEING IN PERSON.
I THINK ZOOM IS GOOD ON SOME
LEVEL BUT FIND I'M MORE
DISTRACTED ON ZOOM. THEN I ALSO
FEEL DISCONNECTED FROM THOSE ON
ZOOM.
BECAUSE WE DON'T SEE THEM AND WE
DON'T SEE THEIR REACTIONS, ET
CETERA. IT WOULD BE NICE FOR
EVERYONE TO BE IN PERSON AND IT
IS NOT ALWAYS PRACTICAL AND
HYBRID FORMAT MAKES PRACTICAL
SENSE ENCOURAGING MOST PEOPLE TO
COME IN WOULD BE GREAT. IF WE
ARE DOING HYBRID IS THERE A WAY
THAT EVERYONE COULD BE SEEN TO
KEEP THE CONNECTION WAS THE
DIFFICULT PART. BASICALLY I
FORGOT ABOUT WHO WAS ONLINE
UNLESS THEY WERE ON VIDEO.
>> YEAH. WE CAN ASK ALL PEOPLE
TURN ON CAMERAS.
>> OKAY.
>> FLORA?
>> THANK YOU.
>> SO, NOTHING NEW TO ADD OWE
ERNL THAN I THINK FRANCISCO SAID
IT WELL. THE OPTION IF IS
POSSIBLE ABOUT DISRUPTING AND
HAVING THAT OPTION FOR PEOPLE
THAT CAN'T MAKE IT FOR THE RARE
CIRCUMSTANCE IS GREAT BUT AGREE
WHEN POSSIBLE, YOU KNOW,
PREFERRED IN PERSON.
REALLY APPRECIATE HAVING A
HYBRID OPTION.
>> CERTAINLY A SHOUTOUT TO ALL
OF THE TECHNICAL TEAM WHO MADE
THIS IN-PERSON HYBRID POSSIBLE.
YOU KNOW, BEFORE BEING HERE IN
PERSON, I -- YOU KNOW, I SORT OF
KNEW YOU WERE BEHIND THE
CURTAIN.
TO GET TO SEE THIS IN ACTION HAS
BEEN VERY, VERY GRATIFYING.
THANKS SO MUCH.
>> WITH THAT, I THINK WE ARE
DONE AND THANKS BARBARA FOR
TAKING OVER AS CHAIR AND FOR ALL
OF YOU FOR A TWO DAYS OF
PRODUCTIVE DISCUSSIONS.
>> SO THANK YOU, EVERYONE. SEE
YOU IN DECEMBER!