1 00:00:04,137 --> 00:00:07,140 Esther asks, could you say more? 2 00:00:07,140 --> 00:00:10,711 Or maybe again the distinction you want to make between 3 00:00:11,011 --> 00:00:13,780 confidence and capacity? 4 00:00:13,780 --> 00:00:17,540 I've been taught, Esther, that confidence is a legal 5 00:00:17,540 --> 00:00:18,552 determination 6 00:00:18,919 --> 00:00:21,795 of broad in capacity, whereas capacity 7 00:00:21,795 --> 00:00:23,991 is a clinical determination. 8 00:00:24,992 --> 00:00:28,629 Yes, and unfortunately people teach this. 9 00:00:29,129 --> 00:00:32,900 I have given talks in large forums filled with people, 10 00:00:32,900 --> 00:00:34,766 and some people come up to the mic 11 00:00:34,766 --> 00:00:36,303 and tell me that I'm wrong. 12 00:00:36,904 --> 00:00:38,742 And that's why in different talks, 13 00:00:38,742 --> 00:00:40,040 I actually have a slide 14 00:00:40,040 --> 00:00:43,210 documenting why I say the following. Yes. 15 00:00:44,044 --> 00:00:46,580 Capacity compensates. Decisional capacity. 16 00:00:46,580 --> 00:00:48,315 Mental capacity. 17 00:00:48,315 --> 00:00:51,151 All those term terms 18 00:00:51,151 --> 00:00:55,222 refer to authority a person ought to have 19 00:00:55,555 --> 00:00:58,992 if they have sufficient amount of functional abilities. 20 00:00:59,526 --> 00:01:01,361 Okay, so that's what it means. 21 00:01:01,361 --> 00:01:04,298 All those terms mean the same thing. 22 00:01:04,298 --> 00:01:07,191 The distinction between legal and clinical 23 00:01:07,191 --> 00:01:09,603 before they're adjudicated or they 24 00:01:09,603 --> 00:01:12,401 they are deemed to have capacity or not 25 00:01:12,401 --> 00:01:15,342 based on legal sanction provided in laws 26 00:01:15,342 --> 00:01:17,718 that clinicians are allowed to make 27 00:01:17,718 --> 00:01:19,279 for certain decisions. 28 00:01:20,113 --> 00:01:22,282 That distinction should be 29 00:01:22,282 --> 00:01:25,953 just described as whether or not it's been determined by court. 30 00:01:25,953 --> 00:01:29,687 So is it adjudicated or is it a clinical determining 31 00:01:29,687 --> 00:01:30,190 ation? 32 00:01:30,691 --> 00:01:33,961 But to say that decision making capacity is a clinical 33 00:01:33,961 --> 00:01:38,044 and non-legal term is flatly contradictory 34 00:01:38,044 --> 00:01:39,599 to all the laws 35 00:01:39,599 --> 00:01:43,437 in this land and other places that use the term capacity, 36 00:01:43,437 --> 00:01:46,293 mental capacity, decision making capacity in the laws 37 00:01:46,293 --> 00:01:46,940 themselves. 38 00:01:47,641 --> 00:01:48,408 Great. 39 00:01:48,408 --> 00:01:51,778 So anyway Imma go ahead and then I'll come over to set. 40 00:01:52,245 --> 00:01:53,747 Yeah I just had a question. 41 00:01:53,747 --> 00:01:55,623 You had a slide about the abilities 42 00:01:55,623 --> 00:01:57,284 that are relevant to capacity. 43 00:01:57,517 --> 00:02:00,198 And one of them was communicating 44 00:02:00,198 --> 00:02:03,690 a stable preference or decision or choice. 45 00:02:03,690 --> 00:02:05,269 Yes. Can you say a little bit more 46 00:02:05,269 --> 00:02:06,893 about what it means to communicate 47 00:02:06,893 --> 00:02:08,869 a stable preference, and specifically 48 00:02:08,869 --> 00:02:11,164 about the stability, because I'm imagining 49 00:02:11,164 --> 00:02:13,351 a reasonable person who, you know, 50 00:02:13,351 --> 00:02:15,602 might go back and forth sometimes. 51 00:02:15,602 --> 00:02:17,671 Yeah. I'll give you an example. 52 00:02:17,671 --> 00:02:21,308 So a person says, you come in and you say, 53 00:02:21,608 --> 00:02:24,510 so is it okay if we do this procedure tomorrow 54 00:02:24,510 --> 00:02:25,078 morning? 55 00:02:25,078 --> 00:02:26,213 You said yes. 56 00:02:26,213 --> 00:02:28,190 Next morning, you show up to take him to the 57 00:02:28,190 --> 00:02:28,415 O.R. 58 00:02:28,415 --> 00:02:30,584 and he says, oh, no, no, I never agreed. 59 00:02:30,584 --> 00:02:33,186 I don't want that. So you can't take him. 60 00:02:33,186 --> 00:02:36,690 So the attending shows up later that day and talks to him again. 61 00:02:36,690 --> 00:02:39,726 He says, oh, yeah, doc, I really want that procedure. 62 00:02:39,726 --> 00:02:43,196 The next morning you go try to do it again. 63 00:02:43,196 --> 00:02:44,631 And he says, no. 64 00:02:44,631 --> 00:02:47,055 This is an example that needs a little bit more 65 00:02:47,055 --> 00:02:47,467 context 66 00:02:47,467 --> 00:02:49,771 for you to understand because of this 67 00:02:49,771 --> 00:02:51,638 background that, his illness. 68 00:02:52,706 --> 00:02:53,674 But that's it. 69 00:02:53,674 --> 00:02:56,328 So the definition really is stable enough 70 00:02:56,328 --> 00:02:58,011 so that you can carry out 71 00:02:58,011 --> 00:03:01,014 the procedure that he expressed, present preferences for. 72 00:03:01,381 --> 00:03:04,351 If you can't even do that, you can't really, 73 00:03:04,651 --> 00:03:07,587 say that you've met the criterion. 74 00:03:07,587 --> 00:03:07,888 Okay. 75 00:03:07,888 --> 00:03:11,058 So the stability has to do with the specific procedure. 76 00:03:11,058 --> 00:03:12,692 Like yeah, yeah. 77 00:03:12,692 --> 00:03:15,429 And it does vary depending on how. 78 00:03:15,429 --> 00:03:18,035 So for example, there was a recent case in 79 00:03:18,035 --> 00:03:18,532 Germany 80 00:03:18,532 --> 00:03:21,635 where a doctor was convicted because, 81 00:03:22,769 --> 00:03:25,806 he provided assisted suicide to a patient 82 00:03:25,806 --> 00:03:29,464 and the person and they the court wanted evidence that 83 00:03:29,464 --> 00:03:30,277 this person 84 00:03:30,277 --> 00:03:34,514 had a very stable preference for this for an extended period. 85 00:03:34,915 --> 00:03:37,584 And they disagreed with doctors attestation. 86 00:03:37,584 --> 00:03:38,552 That was the case. 87 00:03:38,552 --> 00:03:41,388 But so it really varies. 88 00:03:41,388 --> 00:03:42,556 Sham. Okay. 89 00:03:42,556 --> 00:03:44,375 So I think my question is related 90 00:03:44,375 --> 00:03:46,359 to a number of things in your talk. 91 00:03:47,561 --> 00:03:48,228 So at some point you 92 00:03:48,228 --> 00:03:50,257 mentioned that possession of risk 93 00:03:50,257 --> 00:03:52,532 factors does not equate in capacity. 94 00:03:52,966 --> 00:03:54,901 Can you hear me? Okay. 95 00:03:54,901 --> 00:03:57,270 And then, there are these four dimensions, 96 00:03:57,270 --> 00:03:59,866 psychometric dimensions of what it means to have 97 00:03:59,866 --> 00:04:00,407 capacity. 98 00:04:01,575 --> 00:04:03,844 Abilities, ability. Right. 99 00:04:03,844 --> 00:04:06,012 Or a sufficient degree to have capacity. 100 00:04:06,012 --> 00:04:07,581 Right? Right. 101 00:04:07,581 --> 00:04:10,717 And I think my question probably has more relevance for, 102 00:04:10,717 --> 00:04:12,906 a clinical setting rather than a research 103 00:04:12,906 --> 00:04:13,386 setting. 104 00:04:13,386 --> 00:04:16,389 But I wondered, 105 00:04:17,090 --> 00:04:18,725 for someone, for instance, 106 00:04:18,725 --> 00:04:22,796 that has just really wacky background 107 00:04:22,796 --> 00:04:24,825 beliefs about a certain standard 108 00:04:24,825 --> 00:04:25,966 procedure, right? 109 00:04:26,233 --> 00:04:28,798 This prevents that person either from 110 00:04:28,798 --> 00:04:31,571 understanding what the actual treatment 111 00:04:31,571 --> 00:04:33,733 will entail or from reasoning well, 112 00:04:33,733 --> 00:04:35,709 with what the implications are. 113 00:04:37,677 --> 00:04:38,845 How do we navigate in. 114 00:04:38,845 --> 00:04:39,513 Those types of things? 115 00:04:39,513 --> 00:04:42,215 So I actually it's a question of something like, 116 00:04:42,215 --> 00:04:44,445 how do you know this isn't the person who is 117 00:04:44,445 --> 00:04:44,951 Jehovah's 118 00:04:44,951 --> 00:04:47,954 Witness with well-established understanding that, 119 00:04:48,221 --> 00:04:50,407 you know, people can have these diverse 120 00:04:50,407 --> 00:04:52,592 views and then have a good sign versus 121 00:04:52,592 --> 00:04:55,452 somebody who's under a religious delusion, 122 00:04:55,452 --> 00:04:55,929 right. 123 00:04:56,530 --> 00:04:58,957 So yeah, so that falls under the criterion 124 00:04:58,957 --> 00:04:59,766 appreciation. 125 00:05:00,500 --> 00:05:02,517 Now, I didn't go through an elaboration 126 00:05:02,517 --> 00:05:03,603 of all the abilities 127 00:05:03,603 --> 00:05:05,539 because that's another topic. 128 00:05:06,773 --> 00:05:07,774 But exactly. 129 00:05:07,774 --> 00:05:09,713 So that's something that you'd have to 130 00:05:09,713 --> 00:05:10,377 distinguish. 131 00:05:10,377 --> 00:05:13,013 And there are, 132 00:05:13,013 --> 00:05:15,749 definitions and procedures and, 133 00:05:15,749 --> 00:05:17,422 and judgments that you have to make 134 00:05:17,422 --> 00:05:19,286 that distinguish between the two. Yes. 135 00:05:20,153 --> 00:05:21,821 Right. 136 00:05:21,821 --> 00:05:24,057 Mirror. 137 00:05:24,057 --> 00:05:26,760 I have a question about, 138 00:05:26,760 --> 00:05:30,931 consent for like, clinical procedures 139 00:05:30,931 --> 00:05:33,934 and things, in emergency situations. 140 00:05:34,534 --> 00:05:36,039 So, like, say you're in someone's 141 00:05:36,039 --> 00:05:37,270 in an emergency situation, 142 00:05:37,270 --> 00:05:40,273 like they're bleeding out or whatever. 143 00:05:41,141 --> 00:05:44,644 And like, the EMT has come take them to the emergency room, 144 00:05:44,644 --> 00:05:46,491 and once they get there, they're like, 145 00:05:46,491 --> 00:05:47,414 no, like, I don't. 146 00:05:47,414 --> 00:05:48,215 Want. 147 00:05:48,215 --> 00:05:50,570 You to do anything to me that would, like, 148 00:05:50,570 --> 00:05:52,252 prevent me from bleeding out. 149 00:05:52,953 --> 00:05:55,956 But if you don't do that, then they're going to die. 150 00:05:56,223 --> 00:05:58,992 Like, in that situation, would you be able to 151 00:05:58,992 --> 00:06:02,062 override their, like, clear 152 00:06:02,062 --> 00:06:04,631 lack of consent? 153 00:06:04,631 --> 00:06:06,333 Yeah, that's a great question. 154 00:06:06,333 --> 00:06:09,803 So this would take a lot longer to answer it fully 155 00:06:09,803 --> 00:06:12,171 because there are a variety of situations 156 00:06:12,171 --> 00:06:12,806 like this. 157 00:06:13,206 --> 00:06:16,376 And one, sometimes 158 00:06:16,376 --> 00:06:18,784 the lack of consent seems obvious 159 00:06:18,784 --> 00:06:21,848 but may not be there could be underlying. 160 00:06:22,182 --> 00:06:24,751 For example, I have a I actually had an experience 161 00:06:24,751 --> 00:06:27,853 where the person seemed like they were making a clear 162 00:06:27,853 --> 00:06:28,555 preference. 163 00:06:28,888 --> 00:06:30,763 And then three days later when I talked to 164 00:06:30,763 --> 00:06:32,192 her, she said, are you kidding? 165 00:06:32,525 --> 00:06:34,461 I was on another planet. 166 00:06:34,461 --> 00:06:34,961 You know, 167 00:06:34,961 --> 00:06:37,106 she thought she was in some other setting 168 00:06:37,106 --> 00:06:38,832 and she was completely confused. 169 00:06:38,832 --> 00:06:40,367 But at the time she was able to. 170 00:06:41,501 --> 00:06:44,302 Other times they may have a particular 171 00:06:44,302 --> 00:06:44,671 view 172 00:06:44,671 --> 00:06:48,421 in which that makes sense and you may not be able to 173 00:06:48,421 --> 00:06:49,142 override. 174 00:06:49,142 --> 00:06:51,911 So it really effects sensitive. 175 00:06:51,911 --> 00:06:52,812 Okay. Gotcha. 176 00:06:52,812 --> 00:06:54,447 And and it would be different 177 00:06:54,447 --> 00:06:57,751 in a clinical setting versus a research setting. 178 00:06:57,751 --> 00:06:58,418 Right. 179 00:06:58,418 --> 00:07:01,741 Although as Holly knows very well 180 00:07:01,741 --> 00:07:04,157 that there are research 181 00:07:04,157 --> 00:07:06,337 that's done in emergency settings 182 00:07:06,337 --> 00:07:07,394 and this issue, 183 00:07:08,828 --> 00:07:11,844 that there's a complicated set of issues 184 00:07:11,844 --> 00:07:12,899 that come up. 185 00:07:13,366 --> 00:07:17,070 So because an emergency means a broad set of things, like it's 186 00:07:17,070 --> 00:07:18,962 a person on the field bleeding out, 187 00:07:18,962 --> 00:07:20,907 that's like super urgent emergency, 188 00:07:21,174 --> 00:07:23,285 but then there is a person who comes 189 00:07:23,285 --> 00:07:25,045 in, is having a heart attack. 190 00:07:25,445 --> 00:07:28,248 You know, it's a it's a cute, 191 00:07:28,248 --> 00:07:31,584 but it's not like a, you know, two minutes. 192 00:07:31,584 --> 00:07:32,585 It's. Yeah. 193 00:07:32,585 --> 00:07:34,128 You know, unless they get an arrhythmia, 194 00:07:34,128 --> 00:07:34,321 it's 195 00:07:34,321 --> 00:07:37,582 more of a evolving thing in which you can still get 196 00:07:37,582 --> 00:07:38,158 consent. 197 00:07:38,158 --> 00:07:39,701 The question is, what kind of consent 198 00:07:39,701 --> 00:07:40,660 and how do you assess? 199 00:07:42,996 --> 00:07:45,765 Daniel. 200 00:07:45,765 --> 00:07:48,768 Hi. So my question concerns, 201 00:07:49,569 --> 00:07:52,572 like the hierarchies for surrogate decision makers. 202 00:07:52,972 --> 00:07:54,563 And the answer to this might just be that, 203 00:07:54,563 --> 00:07:55,775 like, it varies state to state, 204 00:07:55,775 --> 00:07:59,119 but I'm wondering if there's any sort of pattern 205 00:07:59,119 --> 00:07:59,746 or like, 206 00:08:00,780 --> 00:08:03,720 if we have any, like, reason to skip over 207 00:08:03,720 --> 00:08:06,086 someone, like, on the hierarchy. 208 00:08:06,086 --> 00:08:08,108 That would be a perfectly capable 209 00:08:08,108 --> 00:08:09,089 decision maker. 210 00:08:10,023 --> 00:08:11,958 You know, like, not extremely old 211 00:08:11,958 --> 00:08:16,463 and, like, knows the patient's, wishes, 212 00:08:16,463 --> 00:08:19,666 but we might have other reasons to skip over them. 213 00:08:19,666 --> 00:08:21,227 Like, they might not have the patient's 214 00:08:21,227 --> 00:08:21,868 best interests. 215 00:08:21,868 --> 00:08:23,915 Like it's the sort of thing that might be, 216 00:08:23,915 --> 00:08:25,572 like, a reason to skip over them. 217 00:08:25,572 --> 00:08:26,639 Like, I don't know, I'm thinking, like, 218 00:08:26,639 --> 00:08:29,483 if a spouse like that, maybe the marriage is really on 219 00:08:29,483 --> 00:08:30,009 the rocks 220 00:08:30,009 --> 00:08:31,557 or that they're headed towards a messy 221 00:08:31,557 --> 00:08:33,146 divorce, we might like skip over them, 222 00:08:33,880 --> 00:08:37,083 and then pick like a adult child who similarly knows 223 00:08:37,083 --> 00:08:40,186 the wishes of the patient. Yes. 224 00:08:40,587 --> 00:08:42,922 So that's a good question. 225 00:08:42,922 --> 00:08:46,158 And it varies on the context and what kind of concerns you 226 00:08:46,158 --> 00:08:46,493 have. 227 00:08:49,529 --> 00:08:49,863 I would 228 00:08:49,863 --> 00:08:53,133 say generally your overall point that 229 00:08:53,633 --> 00:08:57,728 how do you apply that hierarchy is what your question 230 00:08:57,728 --> 00:08:58,037 is. 231 00:08:58,671 --> 00:09:02,428 And yeah, and you don't just blindly 232 00:09:02,428 --> 00:09:03,576 follow it. 233 00:09:04,210 --> 00:09:07,586 If you have reason to suspect the spouse 234 00:09:07,586 --> 00:09:08,515 who is 95. 235 00:09:08,848 --> 00:09:12,619 And she herself may seems somewhat, 236 00:09:13,286 --> 00:09:15,798 you know, impaired when you talk to her to get 237 00:09:15,798 --> 00:09:16,289 consent. 238 00:09:16,890 --> 00:09:19,959 Then you need to pursue that right? 239 00:09:19,959 --> 00:09:22,541 So there are all these considerations 240 00:09:22,541 --> 00:09:23,029 there. 241 00:09:23,029 --> 00:09:26,795 Or, you know, honestly, even in this hospital, depending 242 00:09:26,795 --> 00:09:27,400 for this 243 00:09:27,400 --> 00:09:29,672 usually comes out for a clinical decisions 244 00:09:29,672 --> 00:09:30,970 more than for research. 245 00:09:31,704 --> 00:09:34,908 Consent is that availability 246 00:09:35,975 --> 00:09:37,310 is a big factor. 247 00:09:37,310 --> 00:09:40,799 You know, you're not required to, you know, hire a private 248 00:09:40,799 --> 00:09:41,581 investigator 249 00:09:41,581 --> 00:09:44,513 for a week to to locate the known person 250 00:09:44,513 --> 00:09:46,419 that exists was higher up 251 00:09:46,419 --> 00:09:49,489 than the person who's sitting in front of you, 252 00:09:49,489 --> 00:09:50,223 right? So, 253 00:09:51,391 --> 00:09:54,394 yes. So you have to 254 00:09:54,627 --> 00:09:57,530 exercise some, 255 00:09:57,530 --> 00:10:00,166 kind of the general rules of application.