1 00:00:06,381 --> 00:00:07,716 >> GOOD MORNING, EVERYBODY. 2 00:00:07,716 --> 00:00:09,250 I'M TRISH POWELL, DEPUTY 3 00:00:09,250 --> 00:00:09,918 DIRECTOR OF THE NATIONAL 4 00:00:09,918 --> 00:00:19,260 INSTITUTE ON ALCOHOL ABUSE AND 5 00:00:19,260 --> 00:00:20,929 ALCOHOLISM AND CHAIR OF THE 6 00:00:20,929 --> 00:00:22,797 INTERAGENCY COORDINATING 7 00:00:22,797 --> 00:00:24,666 COMMITTEE ON FETAL ALCOHOL 8 00:00:24,666 --> 00:00:25,533 SPECTRUM DISORDER. 9 00:00:25,533 --> 00:00:31,473 I'M DELIGHTED YOU'VE JOINED US 10 00:00:31,473 --> 00:00:36,678 FOR THE 2024 MEETING OF ICCFASD, 11 00:00:36,678 --> 00:00:38,680 THIS IS THE FIRST TIME IN A 12 00:00:38,680 --> 00:00:41,449 WHILE WE'VE BEEN ABLE TO GATHER 13 00:00:41,449 --> 00:00:42,851 IN PERSON. 14 00:00:42,851 --> 00:00:47,555 THIS IS IN ADDITION TO TWO 15 00:00:47,555 --> 00:00:48,556 EXECUTIVE COMMITTEE MEETINGS 16 00:00:48,556 --> 00:00:48,823 ANNUALLY. 17 00:00:48,823 --> 00:00:51,159 YOU'LL FIND THE PROGRAM TODAY 18 00:00:51,159 --> 00:00:52,694 INFORMATIVE AND STIMULATING, IN 19 00:00:52,694 --> 00:00:54,129 ADDITION TO OUR UPDATES FROM 20 00:00:54,129 --> 00:00:56,631 FEDERAL AGENCIES WE HAVE A 21 00:00:56,631 --> 00:00:58,033 SPECIAL PANEL OF THREE 22 00:00:58,033 --> 00:00:59,134 OUTSTANDING SPEAKERS THIS 23 00:00:59,134 --> 00:01:01,669 MORNING WHOM I'LL INTRODUCE 24 00:01:01,669 --> 00:01:02,437 FOLLOWING OUR AGENCY 25 00:01:02,437 --> 00:01:03,204 INTRODUCTIONS. 26 00:01:03,204 --> 00:01:08,143 I WOULD BE REMISS IN I -- IF I 27 00:01:08,143 --> 00:01:13,915 DIDN'T EXPRESS THANKS TO DR. 28 00:01:13,915 --> 00:01:14,749 TATIANA BALACHOVA, EXECUTIVE 29 00:01:14,749 --> 00:01:15,984 SECRETARY, AND HAS PUT TOGETHER 30 00:01:15,984 --> 00:01:17,786 A GREAT MEETING FOR TODAY IN 31 00:01:17,786 --> 00:01:23,591 ADDITION TO COORDINATING 32 00:01:23,591 --> 00:01:25,326 ACTIVITIES SHE DOES. 33 00:01:25,326 --> 00:01:29,597 I'M GOING TO TURN IT OVER FOR 34 00:01:29,597 --> 00:01:30,265 AGENCY REPRESENTATIVE 35 00:01:30,265 --> 00:01:31,132 INTRODUCTIONS. 36 00:01:31,132 --> 00:01:31,466 >> WELCOME. 37 00:01:31,466 --> 00:01:34,069 HAPPY TO HAVE YOU HERE AND WE 38 00:01:34,069 --> 00:01:35,403 HAVE PEOPLE ONLINE SO WE LOOK 39 00:01:35,403 --> 00:01:36,704 FORWARD TO HAVING A GREAT 40 00:01:36,704 --> 00:01:37,038 MEETING. 41 00:01:37,038 --> 00:01:39,007 AT THIS TIME I WOULD LIKE TO 42 00:01:39,007 --> 00:01:41,209 HAVE INTRODUCTIONS SO WE WILL 43 00:01:41,209 --> 00:01:43,111 BEGIN WITH INTRODUCTION AROUND 44 00:01:43,111 --> 00:01:48,349 THE ROOM, JUST TO SAVE TIME TO 45 00:01:48,349 --> 00:01:49,417 BEGIN WONDERFUL PANEL AFTER 46 00:01:49,417 --> 00:01:53,154 INTRODUCTIONS I WOULD ASK YOU TO 47 00:01:53,154 --> 00:01:54,456 SAY YOUR NAME, AGENCY, WHAT 48 00:01:54,456 --> 00:01:59,494 DEPARTMENT IN THE AGENCY YOU'RE 49 00:01:59,494 --> 00:02:01,930 IN. 50 00:02:01,930 --> 00:02:03,998 I'M TATIANA BALACHOVA, EXECUTIVE 51 00:02:03,998 --> 00:02:10,238 SECRETARY AND SCIENTIFIC 52 00:02:10,238 --> 00:02:11,773 COORDINATOR FOR ICCFASD. 53 00:02:11,773 --> 00:02:15,810 AND THIS IS OUR ANNUAL PUBLIC 54 00:02:15,810 --> 00:02:21,416 MEETING. 55 00:02:21,416 --> 00:02:21,549 56 00:02:21,549 --> 00:02:24,052 >> GOOD MORNING, BILL DUNTY, 57 00:02:24,052 --> 00:02:25,820 PROGRAM OFFICER HERE AT NIAAA 58 00:02:25,820 --> 00:02:31,292 AND SERVE AS OUR INSTITUTE'S 59 00:02:31,292 --> 00:02:34,562 FASD RESEARCH COORDINATOR. 60 00:02:34,562 --> 00:02:35,130 >> GOOD MORNING, FROM THE 61 00:02:35,130 --> 00:02:36,197 NATIONAL INSTITUTE OF MENTAL 62 00:02:36,197 --> 00:02:40,268 HEALTH, PROGRAM OFFICER IN THE 63 00:02:40,268 --> 00:02:41,903 DIVISION OF TRANSLATIONAL 64 00:02:41,903 --> 00:02:42,237 RESEARCH. 65 00:02:42,237 --> 00:02:45,073 >> GOOD MORNING, OFFICE OF 66 00:02:45,073 --> 00:02:45,940 PREVENTION INNOVATION AT SAMHSA, 67 00:02:45,940 --> 00:02:55,116 THANK YOU FOR HAVING ME COME. 68 00:02:55,116 --> 00:02:56,451 >> SHARON NEWBERG BROWN, 69 00:02:56,451 --> 00:03:01,456 CHILDREN'S BUREAU, DEPARTMENT OF 70 00:03:01,456 --> 00:03:01,623 HHS. 71 00:03:01,623 --> 00:03:03,558 >> TOM DONALDSON, NON-MEMBER 72 00:03:03,558 --> 00:03:08,062 GUEST TODAY WITH FASD UNITED. 73 00:03:08,062 --> 00:03:13,168 >> HI, I'M EMMA BALDWIN, AND I'M 74 00:03:13,168 --> 00:03:17,572 HERE WITH FASD UNITED, I'M A 75 00:03:17,572 --> 00:03:20,041 FUNDRAISING DEVELOP, JUST HERE 76 00:03:20,041 --> 00:03:25,013 TO SPECTATE. 77 00:03:25,013 --> 00:03:31,152 >> GOOD MORNING, SONSY FERMIN 78 00:03:31,152 --> 00:03:32,987 HEALTH RESOURCES AND SERVICES 79 00:03:32,987 --> 00:03:36,624 ADMINISTRATION, SENIOR PUBLIC 80 00:03:36,624 --> 00:03:39,360 HEALTH ANALYST, PROGRAM OFFICER 81 00:03:39,360 --> 00:03:40,528 WITHIN THE MATERNAL AND CHILD 82 00:03:40,528 --> 00:03:41,863 HEALTH BUREAU. 83 00:03:41,863 --> 00:03:49,504 >> GOOD MORNING, EVERYBODY, 84 00:03:49,504 --> 00:03:50,071 KATHY MITCHELL FASD UNITED, 85 00:03:50,071 --> 00:03:51,606 SENIOR VICE PRESIDENT FOR 86 00:03:51,606 --> 00:03:52,707 PREVENTION AND RECOVERY. 87 00:03:52,707 --> 00:03:54,709 >> KEN JONES, DEPARTMENT OF 88 00:03:54,709 --> 00:03:56,110 PEDIATRICS, UNIVERSITY OF 89 00:03:56,110 --> 00:03:57,312 CALIFORNIA SAN DIEGO. 90 00:03:57,312 --> 00:03:59,180 I'VE BEEN INVOLVED IN THIS 91 00:03:59,180 --> 00:04:08,022 DISORDER FOR A NUMBER OF YEARS. 92 00:04:08,022 --> 00:04:08,690 FIFTY. 93 00:04:08,690 --> 00:04:11,092 >> WE HAVE MEMBERS ONLINE, SO I 94 00:04:11,092 --> 00:04:16,898 WILL ASK YOU TO INTRODUCE 95 00:04:16,898 --> 00:04:17,432 YOURSELF. 96 00:04:17,432 --> 00:04:20,301 SO I CAN SEE PLEASE NIDA. 97 00:04:20,301 --> 00:04:21,369 CAN YOU INTRODUCE YOURSELF? 98 00:04:21,369 --> 00:04:29,477 I WILL CALL BY AGENCY. 99 00:04:29,477 --> 00:04:32,113 >> JANANI PRABHAKAR, AGENCY 100 00:04:32,113 --> 00:04:32,947 REPRESENTATIVE FROM NIDA. 101 00:04:32,947 --> 00:04:37,285 SORRY, I HOPE CAN YOU SEE ME. 102 00:04:37,285 --> 00:04:42,857 NICE TO SEE YOU ALL. 103 00:04:42,857 --> 00:04:45,260 >> ALL RIGHT. 104 00:04:45,260 --> 00:04:50,865 AND NOW WE HAVE OUR MEMBERS FROM 105 00:04:50,865 --> 00:04:54,068 CMS, PLEASE INTRODUCE YOURSELF. 106 00:04:54,068 --> 00:04:56,437 >> MARTHA SIBLEY, CMS, SOCIAL 107 00:04:56,437 --> 00:05:05,179 SCIENCE RESEARCH SCIENTIST, 108 00:05:05,179 --> 00:05:06,080 ALTERNATE REPRESENTATIVE. 109 00:05:06,080 --> 00:05:09,884 >> OKAY. 110 00:05:09,884 --> 00:05:16,891 WE HAVE OUR GUEST SPEAKERS HERE, 111 00:05:16,891 --> 00:05:19,394 I SEE THERE'S DR. JANINE 112 00:05:19,394 --> 00:05:20,595 CLAYTON, PLEASE INTRODUCE 113 00:05:20,595 --> 00:05:21,162 YOURSELF. 114 00:05:21,162 --> 00:05:23,231 >> GOOD MORNING, EVERYONE. 115 00:05:23,231 --> 00:05:24,666 JANINE CLAYTON, NIH ASSOCIATE 116 00:05:24,666 --> 00:05:26,501 DIRECTOR FOR RESEARCH ON WOMEN'S 117 00:05:26,501 --> 00:05:28,303 HEALTH AT NIH, IN THAT CAPACITY 118 00:05:28,303 --> 00:05:30,672 I DIRECT THE OFFICE OF RESEARCH 119 00:05:30,672 --> 00:05:31,806 ON WOMEN'S HEALTH, DELIGHTED TO 120 00:05:31,806 --> 00:05:35,176 BE HERE WITH YOU ALL TODAY. 121 00:05:35,176 --> 00:05:37,111 >> THANK YOU. 122 00:05:37,111 --> 00:05:42,950 AND WE HAVE INDIAN HEALTH 123 00:05:42,950 --> 00:05:47,088 SERVICE. 124 00:05:47,088 --> 00:05:48,523 >> GOOD MORNING, TINA 125 00:05:48,523 --> 00:05:49,791 PATTARA-LAU OFFICE OF CLINICAL 126 00:05:49,791 --> 00:05:50,925 PREVENTIVE SERVICES, THANK YOU 127 00:05:50,925 --> 00:05:54,862 FOR THE INVITATION TO BE HERE. 128 00:05:54,862 --> 00:05:55,830 >> THANK YOU. 129 00:05:55,830 --> 00:06:00,535 WE HAVE MEMBERS FROM CDC. 130 00:06:00,535 --> 00:06:02,203 PLEASE INTRODUCE YOURSELF. 131 00:06:02,203 --> 00:06:04,605 >> GOOD MORNING, THIS IS 132 00:06:04,605 --> 00:06:08,042 ELIZABETH DANG, CDC IN ATLANTA, 133 00:06:08,042 --> 00:06:08,910 ALTERNATIVE REPRESENTATIVE. 134 00:06:08,910 --> 00:06:12,714 THANKS. 135 00:06:12,714 --> 00:06:13,147 >> OKAY. 136 00:06:13,147 --> 00:06:17,518 DO WE HAVE ANY OTHER MEMBERS 137 00:06:17,518 --> 00:06:17,752 ONLINE? 138 00:06:17,752 --> 00:06:19,387 I DON'T SEE. 139 00:06:19,387 --> 00:06:22,023 DID I MISS SOMEONE? 140 00:06:22,023 --> 00:06:23,758 I'M HERE FROM NICHD. 141 00:06:23,758 --> 00:06:24,525 >> OKAY, NICHD. 142 00:06:24,525 --> 00:06:29,130 GO AHEAD. 143 00:06:29,130 --> 00:06:31,399 >> YEAH, HI, MEGHAN O'NEILL, 144 00:06:31,399 --> 00:06:32,433 MEDICAL CENTER IN INTELLECTUAL 145 00:06:32,433 --> 00:06:33,634 AND DISABILITIES BRANCH. 146 00:06:33,634 --> 00:06:37,004 NICE TO BE HERE. 147 00:06:37,004 --> 00:06:37,972 >> OKAY. 148 00:06:37,972 --> 00:06:38,406 WELCOME. 149 00:06:38,406 --> 00:06:40,541 I ALSO SEE HERE ONLINE, I SEE 150 00:06:40,541 --> 00:06:41,943 ADMINISTRATION FOR CHILDREN AND 151 00:06:41,943 --> 00:06:42,210 FAMILIES. 152 00:06:42,210 --> 00:06:43,378 GO AHEAD. 153 00:06:43,378 --> 00:06:45,980 >> GOOD MORNING, EVERYONE, TAMMY 154 00:06:45,980 --> 00:06:47,415 WHITE, RESEARCH ANALYST, 155 00:06:47,415 --> 00:06:50,251 ALTERNATE REPRESENTATIVE FROM 156 00:06:50,251 --> 00:06:51,052 CHILDREN'S BUREAU ADMINISTRATION 157 00:06:51,052 --> 00:06:51,953 FOR CHILDREN AND FAMILIES. 158 00:06:51,953 --> 00:06:52,653 THANK YOU. 159 00:06:52,653 --> 00:06:54,522 >> ALL RIGHT, THANK YOU. 160 00:06:54,522 --> 00:06:56,591 I HAVE ANOTHER, I HAVE 161 00:06:56,591 --> 00:06:59,460 REPRESENTATIVE FROM CDC NOW 162 00:06:59,460 --> 00:07:04,165 ONLINE. 163 00:07:04,165 --> 00:07:13,141 >> GOOD MORNING, SHIN KIM, AND I 164 00:07:13,141 --> 00:07:14,642 AM FROM THE DIVISION OF 165 00:07:14,642 --> 00:07:14,976 DISORDERS. 166 00:07:14,976 --> 00:07:17,178 >> DO WE HAVE EVERYBODY WHO IS 167 00:07:17,178 --> 00:07:18,679 ONLINE NOW, IF I MISSED YOU 168 00:07:18,679 --> 00:07:23,084 PLEASE RAISE YOUR HAND NOW. 169 00:07:23,084 --> 00:07:23,284 OKAY. 170 00:07:23,284 --> 00:07:24,685 THANK YOU. 171 00:07:24,685 --> 00:07:26,053 HYBRID MEETINGS IS A CHALLENGE, 172 00:07:26,053 --> 00:07:27,021 YOU CAN TELL YOU. 173 00:07:27,021 --> 00:07:32,160 I'M SORRY IF I DON'T SEE YOU 174 00:07:32,160 --> 00:07:32,560 ONLINE. 175 00:07:32,560 --> 00:07:34,228 WITH THAT WE FINISHED 176 00:07:34,228 --> 00:07:39,600 INTRODUCTION OF MEMBERS AND 177 00:07:39,600 --> 00:07:41,335 REPRESENTATIVES, AND I PASS BACK 178 00:07:41,335 --> 00:07:42,737 TO -- OH, YES, I'M SORRY. 179 00:07:42,737 --> 00:07:46,941 YES, I SEE WE DO HAVE THIS 180 00:07:46,941 --> 00:07:49,210 MEETING, WE HAVE TWO AD HOC 181 00:07:49,210 --> 00:07:55,783 MEMBERS WHO WE HAVE NOW ONLINE I 182 00:07:55,783 --> 00:07:55,950 SEE. 183 00:07:55,950 --> 00:07:59,720 PLEASE INTRODUCE YOURSELF. 184 00:07:59,720 --> 00:08:01,923 >> GOOD MORNING, THANK YOU FOR 185 00:08:01,923 --> 00:08:02,757 ASKING ME. 186 00:08:02,757 --> 00:08:05,326 I WEAR A LOT OF HATS, BUT 187 00:08:05,326 --> 00:08:08,196 PRIMARILY AT THIS POINT IN TIME 188 00:08:08,196 --> 00:08:11,132 I MANAGE THE WORK OF THE 189 00:08:11,132 --> 00:08:13,434 INTERNATIONAL ADULT LEADERSHIP 190 00:08:13,434 --> 00:08:14,869 COLLABORATIVE OF FASD 191 00:08:14,869 --> 00:08:16,070 CHANGEMAKERS, APART FROM THAT 192 00:08:16,070 --> 00:08:18,806 I'M A PARENT OF MANY PEOPLE WITH 193 00:08:18,806 --> 00:08:20,975 A GOLD STANDARD DIAGNOSIS FOR 194 00:08:20,975 --> 00:08:24,045 FASD WHO ARE NOW ADULTS. 195 00:08:24,045 --> 00:08:24,512 THANK YOU. 196 00:08:24,512 --> 00:08:30,852 >> WE'RE DELIGHTED TO HAVE YOU 197 00:08:30,852 --> 00:08:31,152 HERE. 198 00:08:31,152 --> 00:08:39,861 NOW REPRESENTATIVES WITH LIVED 199 00:08:39,861 --> 00:08:40,828 EXPERIENCE. 200 00:08:40,828 --> 00:08:42,563 GO AHEAD, INTRODUCE YOURSELF, 201 00:08:42,563 --> 00:08:52,306 OUR AD HOC MEMBER AT ICCFASD. 202 00:08:52,306 --> 00:08:54,609 >> CJ LATKE, DIAGNOSED AT -- 203 00:08:54,609 --> 00:08:58,546 OFFICIALLY 5, ACTUALLY I WAS 204 00:08:58,546 --> 00:09:00,948 DIAGNOSED AT SIX WEEKS OLD, 205 00:09:00,948 --> 00:09:01,949 FETAL ALCOHOL SPECTRUM DISORDER, 206 00:09:01,949 --> 00:09:07,221 NOW 40, I'M A FOUNDING MEMBER OF 207 00:09:07,221 --> 00:09:09,390 THE ADULT LEADERSHIP 208 00:09:09,390 --> 00:09:10,391 COLLABORATIVE FASD CHANGEMAKERS, 209 00:09:10,391 --> 00:09:13,628 ADOPTIVE MOM TO ONE, 210 00:09:13,628 --> 00:09:15,196 MOMMY/AUNTIE TO ANOTHER, BOTH 211 00:09:15,196 --> 00:09:19,333 BOYS, AND ONE IS 18, AND ONE IS 212 00:09:19,333 --> 00:09:19,767 11. 213 00:09:19,767 --> 00:09:22,270 BOTH HAVE FETAL ALCOHOL SPECTRUM 214 00:09:22,270 --> 00:09:23,638 DISORDER AS WELL. 215 00:09:23,638 --> 00:09:24,272 >> THANK YOU, CJ. 216 00:09:24,272 --> 00:09:26,240 WE'RE HAPPY TO HAVE YOU AT THIS 217 00:09:26,240 --> 00:09:27,008 MEETING. 218 00:09:27,008 --> 00:09:27,275 THANK YOU. 219 00:09:27,275 --> 00:09:30,011 I THINK WE INTRODUCED EVERYBODY 220 00:09:30,011 --> 00:09:32,813 AND I GO BACK TO MS. POWELL. 221 00:09:32,813 --> 00:09:33,114 >> THANKS. 222 00:09:33,114 --> 00:09:34,115 WELCOME TO EVERYBODY. 223 00:09:34,115 --> 00:09:35,883 WE'RE EXCITED TO HAVE A 224 00:09:35,883 --> 00:09:37,051 FANTASTIC PANEL THIS MORNING, SO 225 00:09:37,051 --> 00:09:40,555 I'M GOING TO INTRODUCE OUR FIRST 226 00:09:40,555 --> 00:09:42,857 SPEAKER WHO HAS BEEN IN THIS 227 00:09:42,857 --> 00:09:43,991 AREA SINCE THE BEGINNING, AND 228 00:09:43,991 --> 00:09:45,393 HAS A LOT TO SHARE WITH US. 229 00:09:45,393 --> 00:09:48,796 I KNOW YOU'RE GOING TO ENJOY HIS 230 00:09:48,796 --> 00:09:49,230 PRESENTATION. 231 00:09:49,230 --> 00:09:52,166 DR. KEN JONES IS DISTINGUISHED 232 00:09:52,166 --> 00:09:53,868 PROFESSOR OF PEDIATRICS, FOR 50 233 00:09:53,868 --> 00:09:57,004 YEARS CHIEF OF THE DIVISION OF 234 00:09:57,004 --> 00:09:58,139 DYSMORPHOLOGY AND TERATOLOGY IN 235 00:09:58,139 --> 00:09:59,974 SCHOOL OF MEDICINE, UNIVERSITY 236 00:09:59,974 --> 00:10:02,176 OF CALIFORNIA SAN DIEGO. 237 00:10:02,176 --> 00:10:04,211 AND DIRECT CENTER FOR BETTER 238 00:10:04,211 --> 00:10:06,080 BEGINNINGS, NOTABLY ONE OF TWO 239 00:10:06,080 --> 00:10:10,217 PHYSICIANS WHO FIRST DESCRIBED 240 00:10:10,217 --> 00:10:12,186 FETAL ALCOHOL SYNDROME IN 1973 241 00:10:12,186 --> 00:10:14,288 WHICH HE WILL DESCRIBE THAT 242 00:10:14,288 --> 00:10:14,922 JOURNEY IN HIS PRESENTATION TO 243 00:10:14,922 --> 00:10:16,891 YOU THIS MORNING. 244 00:10:16,891 --> 00:10:18,659 HE'S CLINICALLY EVALUATED 245 00:10:18,659 --> 00:10:23,364 HUNDREDS OF CHILDREN PRENATAL 246 00:10:23,364 --> 00:10:27,301 EXPOSED TO ALCOHOL IN UNITED 247 00:10:27,301 --> 00:10:29,070 STATES, RISK, UKRAINE, ITALY, 248 00:10:29,070 --> 00:10:31,672 SOUTH AFRICA, SOUTH KOREA, 249 00:10:31,672 --> 00:10:34,108 POLAND AND LED RESEARCH STUDIES 250 00:10:34,108 --> 00:10:35,309 INVOLVING PREGNANT WOMEN, 251 00:10:35,309 --> 00:10:35,910 ENVIRONMENTAL EXPOSURE, BIRTH 252 00:10:35,910 --> 00:10:36,811 AND CHILD OUTCOMES. 253 00:10:36,811 --> 00:10:39,580 FOR 40 YEARS HE DIRECTED THE 254 00:10:39,580 --> 00:10:41,415 BIRTH DEFECTS CLINIC AT UCSD 255 00:10:41,415 --> 00:10:45,252 WHERE HE EVALUATED CHILDREN FROM 256 00:10:45,252 --> 00:10:47,455 THROUGHOUT SOUTHERN CALIFORNIA, 257 00:10:47,455 --> 00:10:49,957 IN 1976 FOUNDED CALIFORNIA 258 00:10:49,957 --> 00:10:51,058 TERATOGEN INFORMATION SERVICE, 259 00:10:51,058 --> 00:10:52,793 NOW REFERRED TO AS MOTHER TO 260 00:10:52,793 --> 00:10:53,361 BABY. 261 00:10:53,361 --> 00:10:54,762 SIMILAR PROGRAMS HAVE BEEN 262 00:10:54,762 --> 00:10:57,198 STARTED THROUGHOUT THE UNITED 263 00:10:57,198 --> 00:10:59,000 STATES, CANADA, EUROPE, UKRAINE, 264 00:10:59,000 --> 00:11:00,835 JAPAN, SOUTH AMERICA, ALL 265 00:11:00,835 --> 00:11:01,902 MODELED AFTER THIS PROGRAM. 266 00:11:01,902 --> 00:11:04,538 HE IS ALSO THE AUTHOR OF 267 00:11:04,538 --> 00:11:05,740 RECOGNIZABLE PATTERNS OF HUMAN 268 00:11:05,740 --> 00:11:07,341 MALFORMATION WHICH IS IN ITS 269 00:11:07,341 --> 00:11:08,376 EIGHTH EDITION. 270 00:11:08,376 --> 00:11:18,919 DR. JONES, IT'S A REAL PLEASURE 271 00:11:20,955 --> 00:11:21,656 TO WELCOME YOU. 272 00:11:21,656 --> 00:11:22,490 >> THANK YOU. 273 00:11:22,490 --> 00:11:30,264 IT'S A PLEASURE TO BE HERE. 274 00:11:30,264 --> 00:11:30,398 SO 275 00:11:30,398 --> 00:11:32,133 BASICALLY, I'M THRILLED HERE TO 276 00:11:32,133 --> 00:11:34,568 BE HERE TODAY, AND TO TALK TO 277 00:11:34,568 --> 00:11:35,636 YOU ABOUT THIS DISORDER. 278 00:11:35,636 --> 00:11:39,874 I'M GOING TO TAKE YOU THROUGH A 279 00:11:39,874 --> 00:11:40,875 LOOK AT FETAL ALCOHOL SPECTRUM 280 00:11:40,875 --> 00:11:41,275 DISORDER. 281 00:11:41,275 --> 00:11:43,944 I'M GOING TO FOCUS ON HOW WE GOT 282 00:11:43,944 --> 00:11:49,350 HERE FROM WHERE WE STARTED IN 1. 283 00:11:49,350 --> 00:11:51,052 GO AHEAD. 284 00:11:51,052 --> 00:11:52,386 THANKS. 285 00:11:52,386 --> 00:11:52,920 ALL RIGHT. 286 00:11:52,920 --> 00:11:56,323 THIS IS WHERE IT ALL STARTED. 287 00:11:56,323 --> 00:11:58,726 THIS IS DR. DAVID W SMITH. 288 00:11:58,726 --> 00:12:01,362 HE WAS A PROFESSOR OF PEDIATRICS 289 00:12:01,362 --> 00:12:02,863 AT UNIVERSITY OF WASHINGTON, I 290 00:12:02,863 --> 00:12:04,632 WAS LUCKY ENOUGH TO BE A 291 00:12:04,632 --> 00:12:07,234 POSTDOCTORAL FELLOW WITH HIM 292 00:12:07,234 --> 00:12:08,602 FROM 1972 TO 1974. 293 00:12:08,602 --> 00:12:11,038 HE WAS MY HERO THEN, STILL IS MY 294 00:12:11,038 --> 00:12:11,539 HERO. 295 00:12:11,539 --> 00:12:13,607 I THINK HE WAS THE MOST CREATIVE 296 00:12:13,607 --> 00:12:15,042 HUMAN BEING I'VE EVER KNOWN. 297 00:12:15,042 --> 00:12:19,980 YOU SEE HIM HERE IN WESTERN 298 00:12:19,980 --> 00:12:22,249 ARIZONA, EASTERN NEW MEXICO, HE 299 00:12:22,249 --> 00:12:24,351 WAS QUITE A MAN. 300 00:12:24,351 --> 00:12:27,421 SO ONE DAY IN EARLY FEBRUARY, OF 301 00:12:27,421 --> 00:12:30,825 1973, HE GOT A CALL FROM A WOMAN 302 00:12:30,825 --> 00:12:32,560 NAMED DR. SHIRLEY ANDERSON, WHO 303 00:12:32,560 --> 00:12:34,762 RAN THE OUTPATIENT CLINIC AT 304 00:12:34,762 --> 00:12:37,164 KING COUNTY HOSPITAL, THE COUNTY 305 00:12:37,164 --> 00:12:38,699 HOSPITAL IN SAN DIEGO, SHIRLEY 306 00:12:38,699 --> 00:12:41,102 SAID TO HIM, DR. SMITH, I'VE GOT 307 00:12:41,102 --> 00:12:42,937 EIGHT CHILDREN DOWN HERE ALL OF 308 00:12:42,937 --> 00:12:44,939 WHOM HAVE BEEN BORN TO CHRONIC 309 00:12:44,939 --> 00:12:46,140 ALCOHOLIC WOMEN AND THEY SEEM TO 310 00:12:46,140 --> 00:12:48,642 LOOK A LITTLE BIT UNUSUAL TO ME. 311 00:12:48,642 --> 00:12:49,610 WOULD YOU BE WILLING TO COME 312 00:12:49,610 --> 00:12:51,579 DOWN AND LOOK AT THEM? 313 00:12:51,579 --> 00:12:53,781 HE SAID, OF COURSE, I'LL BE 314 00:12:53,781 --> 00:12:54,115 DOWN. 315 00:12:54,115 --> 00:12:56,083 AND I WAS HIS FELLOW SO I JUMPED 316 00:12:56,083 --> 00:13:00,020 IN THE CAR WITH HIM AND WE WENT 317 00:13:00,020 --> 00:13:01,122 DOWN THERE. 318 00:13:01,122 --> 00:13:03,424 IT TURNED OUT THAT ABOUT THREE 319 00:13:03,424 --> 00:13:05,292 YEARS PRIOR TO THAT, A PEDIATRIC 320 00:13:05,292 --> 00:13:08,896 RESIDENT BY THE NAME OF CHRISTY 321 00:13:08,896 --> 00:13:11,065 ULOWEN WAS ON CALL AT KING 322 00:13:11,065 --> 00:13:12,733 COUNTY HOSPITAL, ON THE 323 00:13:12,733 --> 00:13:15,035 PEDIATRIC SERVICE, AND SHE GOT 324 00:13:15,035 --> 00:13:16,804 CORNERED BY THE RESIDENT IN 325 00:13:16,804 --> 00:13:18,405 OBSTETRICS WORKING THAT NIGHT. 326 00:13:18,405 --> 00:13:19,740 HE SAID TO HER, CHRISTY, WHAT DO 327 00:13:19,740 --> 00:13:21,041 YOU KNOW ABOUT BABIES BORN TO 328 00:13:21,041 --> 00:13:21,809 ALCOHOLIC WOMEN? 329 00:13:21,809 --> 00:13:22,376 SHE SAID NOTHING. 330 00:13:22,376 --> 00:13:23,778 WHY DO YOU ASK? 331 00:13:23,778 --> 00:13:25,746 HE SAID BECAUSE I'M ABOUT TO 332 00:13:25,746 --> 00:13:26,847 DELIVER SUCH A WOMAN, AND I 333 00:13:26,847 --> 00:13:28,048 REALLY DON'T KNOW QUITE WHAT TO 334 00:13:28,048 --> 00:13:28,816 DO. 335 00:13:28,816 --> 00:13:30,117 CAN YOU FIND OUT WHAT YOU CAN 336 00:13:30,117 --> 00:13:32,119 FIND OUT ABOUT IT AND SHE SAID 337 00:13:32,119 --> 00:13:33,988 SURE, SO SHE RACED DOWN THE 338 00:13:33,988 --> 00:13:36,724 STAIRS, ACROSS THE STREET TO THE 339 00:13:36,724 --> 00:13:38,692 LIBRARY AT KING COUNTY AND 340 00:13:38,692 --> 00:13:40,561 LOOKED UP EVERYTHING SHE COULD 341 00:13:40,561 --> 00:13:41,962 FIND, THIS WAS 1973, ON ALCOHOL 342 00:13:41,962 --> 00:13:45,366 AND ITS EFFECT ON THE UNBORN 343 00:13:45,366 --> 00:13:49,637 BABY AND FOUND ABSOLUTELY 344 00:13:49,637 --> 00:13:52,273 NOTHING EXCEPT IN ONE SHORT NOTE 345 00:13:52,273 --> 00:13:56,010 IN TEXT BOOK OF OBSTETRICS AND 346 00:13:56,010 --> 00:13:57,311 GYNECOLOGY, THE MAIN TEXT BOOK 347 00:13:57,311 --> 00:13:59,046 OF THE DAY, ALCOHOL WAS IN FACT 348 00:13:59,046 --> 00:14:00,714 GOOD FOR THE UNBORN BABY. 349 00:14:00,714 --> 00:14:03,551 BACK SHE RAN, UP THE STEPS, 350 00:14:03,551 --> 00:14:05,753 TALKED TO THE OBSTETRICS 351 00:14:05,753 --> 00:14:08,289 RESIDENT AND TOLD TO HER WHAT 352 00:14:08,289 --> 00:14:09,490 SHE FOUND OUT. 353 00:14:09,490 --> 00:14:10,991 THEY ROLLED THEIR EYES AND 354 00:14:10,991 --> 00:14:18,899 DELIVERED THE BABY, QUITE SMALL 355 00:14:18,899 --> 00:14:19,767 FOR GESTATIONAL AGE, 356 00:14:19,767 --> 00:14:21,268 MICROCEPHALIC, ALSO VERY SMALL 357 00:14:21,268 --> 00:14:21,502 OVERALL. 358 00:14:21,502 --> 00:14:26,540 OVER THE YEARS CHRISTY GOT 359 00:14:26,540 --> 00:14:28,409 INTERESTED IN THIS ISSUE, AN 360 00:14:28,409 --> 00:14:29,176 AMAZING RESIDENT AND DOCTOR. 361 00:14:29,176 --> 00:14:31,679 OVER THE YEARS SHE WAS ABLE 362 00:14:31,679 --> 00:14:35,115 TO -- OVER THREE YEARS WAS ABLE 363 00:14:35,115 --> 00:14:37,184 TO GET EIGHT CHILDREN, TO SEE 364 00:14:37,184 --> 00:14:39,820 EIGHT CHILDREN ALL BORN TO 365 00:14:39,820 --> 00:14:40,621 CHRONIC ALCOHOLIC WOMEN, ALL 366 00:14:40,621 --> 00:14:42,656 SIMILAR TO THE BABY THAT SHE WAS 367 00:14:42,656 --> 00:14:44,525 INVOLVED WITH THE DELIVERY ON. 368 00:14:44,525 --> 00:14:46,927 AND THEN CHRISTY WENT INTO THE 369 00:14:46,927 --> 00:14:48,128 PRIVATE PRACTICE OF PEDIATRICS 370 00:14:48,128 --> 00:14:50,364 IN THE SEATTLE AREA, AND TURNED 371 00:14:50,364 --> 00:14:52,066 THESE PATIENTS, THESE EIGHT 372 00:14:52,066 --> 00:14:54,902 KIDS, OVER TO DR. SHIRLEY 373 00:14:54,902 --> 00:14:58,405 ANDERSON, AT THE OUTPATIENT 374 00:14:58,405 --> 00:14:59,406 CLINIC THERE. 375 00:14:59,406 --> 00:15:02,343 SHIRLEY LOOKED AT THESE KIDS AND 376 00:15:02,343 --> 00:15:04,645 THOUGHT THAT'S OF THEY LOOKED 377 00:15:04,645 --> 00:15:04,912 DIFFERENT. 378 00:15:04,912 --> 00:15:05,746 SHE CALLED DAVE SMITH, AND 379 00:15:05,746 --> 00:15:08,716 THAT'S HOW THIS ALL GOT STARTED. 380 00:15:08,716 --> 00:15:10,784 WE WENT INTO -- THE TWO OF US 381 00:15:10,784 --> 00:15:12,086 WENT INTO THIS ROOM WHICH WAS 382 00:15:12,086 --> 00:15:18,058 HALF THE SIZE OF THIS ROOM, AND 383 00:15:18,058 --> 00:15:19,660 AROUND THE WALLS OF THE 384 00:15:19,660 --> 00:15:21,929 EXAMINING ROOM WERE THESE EIGHT 385 00:15:21,929 --> 00:15:22,396 KIDS. 386 00:15:22,396 --> 00:15:26,233 AND THEY WERE ALL ON THEIR 387 00:15:26,233 --> 00:15:32,006 BIOLOGIC MOTHER'S OR CAREGIVER'S 388 00:15:32,006 --> 00:15:33,140 LAPS, WE WENT FROM ONE TO THE 389 00:15:33,140 --> 00:15:34,541 NEXT TO THE NEXT TO THE NEXT. 390 00:15:34,541 --> 00:15:36,076 HERE ARE FOUR OF THEM. 391 00:15:36,076 --> 00:15:39,780 AND THESE WERE THE KIDS, THE 392 00:15:39,780 --> 00:15:42,950 FOUR KIDS, THAT LOOKED 393 00:15:42,950 --> 00:15:43,517 DIFFERENT. 394 00:15:43,517 --> 00:15:46,153 THAT IN FACT SHIRLEY WAS SEEN 395 00:15:46,153 --> 00:15:47,254 AND THOUGHT WERE LOOKING A 396 00:15:47,254 --> 00:15:47,988 LITTLE DIFFERENT. 397 00:15:47,988 --> 00:15:51,525 NOW, THE OTHER FOUR KIDS THAT WE 398 00:15:51,525 --> 00:15:54,895 LOOKED AT WERE ALSO GROWTH 399 00:15:54,895 --> 00:15:57,798 DEFICIENT AND INTELLECTUALLY 400 00:15:57,798 --> 00:15:58,933 DISABLED, HAD MICROCEPHALY BUT 401 00:15:58,933 --> 00:16:00,267 NOT THIS PATTERN OF MALFORMATION 402 00:16:00,267 --> 00:16:02,136 THESE KIDS HAD. 403 00:16:02,136 --> 00:16:04,638 WE GOT INTO DAVE'S CAR TO GO 404 00:16:04,638 --> 00:16:06,040 BACK TO HIS OFFICE AT THE 405 00:16:06,040 --> 00:16:07,074 UNIVERSITY OF WASHINGTON, HE 406 00:16:07,074 --> 00:16:08,575 LOOKED AT ME AND SAID, KEN, WHAT 407 00:16:08,575 --> 00:16:10,744 DO YOU THINK ABOUT THAT? 408 00:16:10,744 --> 00:16:13,147 I SAID NOT MUCH, DAVE, HOW ABOUT 409 00:16:13,147 --> 00:16:13,814 YOU? 410 00:16:13,814 --> 00:16:14,915 HE SAID, KEN, THIS IS THE MOST 411 00:16:14,915 --> 00:16:17,418 IMPORTANT THING YOU WILL EVER 412 00:16:17,418 --> 00:16:17,584 SEE. 413 00:16:17,584 --> 00:16:18,652 IT'S THE MOST IMPORTANT THING 414 00:16:18,652 --> 00:16:21,288 THAT I HAVE EVER SEEN. 415 00:16:21,288 --> 00:16:22,790 AND HE WAS RIGHT. 416 00:16:22,790 --> 00:16:25,726 HE WAS RIGHT THERE. 417 00:16:25,726 --> 00:16:30,998 SO, THE NEXT WEEK DAVE WENT TO 418 00:16:30,998 --> 00:16:32,533 DAYTON, OHIO, WHERE HE WAS A 419 00:16:32,533 --> 00:16:33,500 VISITING PROFESSOR. 420 00:16:33,500 --> 00:16:35,803 WHILE THERE HE TALKED TO THE 421 00:16:35,803 --> 00:16:37,104 CHIEF RESIDENT IN PEDIATRICS AND 422 00:16:37,104 --> 00:16:40,074 ASKED IF HE HAD EVER SEEN A 423 00:16:40,074 --> 00:16:41,175 CHILD BORN TO ALCOHOLIC WOMAN. 424 00:16:41,175 --> 00:16:43,510 HE SAID A YEAR AGO, I DID. 425 00:16:43,510 --> 00:16:45,446 DAVE SAID, CAN YOU MAKE CONTACT 426 00:16:45,446 --> 00:16:46,680 AND MAYBE HAVE THEM COME IN SO I 427 00:16:46,680 --> 00:16:49,383 CAN TAKE A LOOK. 428 00:16:49,383 --> 00:16:50,484 AND THE RESIDENT CALLED THIS 429 00:16:50,484 --> 00:16:52,252 FAMILY AND THEY CAME DOWN TO 430 00:16:52,252 --> 00:16:54,655 DAYTON AND IT WAS A DEAD RINGER 431 00:16:54,655 --> 00:16:58,025 FOR THESE FOUR KIDS WE'VE SEEN. 432 00:16:58,025 --> 00:16:59,693 WHILE HE WAS AWAY, WE -- I WAS 433 00:16:59,693 --> 00:17:00,995 CALLED OVER TO THE CHILDREN'S 434 00:17:00,995 --> 00:17:03,630 ORTHOPEDIC HOSPITAL TO SEE A 435 00:17:03,630 --> 00:17:07,001 CHILD WITH CONGENITAL HIP 436 00:17:07,001 --> 00:17:08,235 DISLOCATIONS, EXPOSED TO ALCOHOL 437 00:17:08,235 --> 00:17:09,737 DURING PREGNANCY AND WAS A DEAD 438 00:17:09,737 --> 00:17:10,838 RINGER AS WELL. 439 00:17:10,838 --> 00:17:13,374 IN A PERIOD LITERALLY OF TWO 440 00:17:13,374 --> 00:17:17,878 WEEKS WE SAW THESE INITIAL SIX 441 00:17:17,878 --> 00:17:20,047 KIDS, WITH THIS DISORDER. 442 00:17:20,047 --> 00:17:24,318 THE OTHER TWO KIDS CAME FROM 443 00:17:24,318 --> 00:17:25,953 DAVE SMITH'S UNKNOWN FILE. 444 00:17:25,953 --> 00:17:27,921 SO HIS UNPHONE FILE WAS A GROUP 445 00:17:27,921 --> 00:17:30,324 OF CHILDREN THAT HE HAD SEEN 446 00:17:30,324 --> 00:17:32,092 OVER THE YEARS AND I'M NOT 447 00:17:32,092 --> 00:17:33,894 GOING -- I HAVE NO IDEA WHAT THE 448 00:17:33,894 --> 00:17:35,696 TOTAL WAS BUT THERE WERE A LOT 449 00:17:35,696 --> 00:17:37,231 WHO HE DIDN'T KNOW WHAT THE 450 00:17:37,231 --> 00:17:37,998 CHILD HAD. 451 00:17:37,998 --> 00:17:41,402 SO WHAT WE DID WAS PUT IN THE 452 00:17:41,402 --> 00:17:43,804 UNKNOWN FILE THE THREE FEATURES 453 00:17:43,804 --> 00:17:45,205 THAT WERE MOST CONSISTENT WITH 454 00:17:45,205 --> 00:17:47,641 THIS GROUP OF SIX THAT WE HAD 455 00:17:47,641 --> 00:17:48,942 SEEN. 456 00:17:48,942 --> 00:17:58,585 AND SO WE PUT IN A SMOOTH LONG 457 00:17:58,585 --> 00:18:00,654 FILLTRUM, AND VERMILLION BORDER 458 00:18:00,654 --> 00:18:01,522 WITHOUT THIS CUPID'S BOW, I'LL 459 00:18:01,522 --> 00:18:04,024 SHOW YOU IN MORE DETAIL IN JUST 460 00:18:04,024 --> 00:18:13,700 A MINUTE. 461 00:18:13,700 --> 00:18:15,436 AND INTELLECTUAL DISABILITY. 462 00:18:15,436 --> 00:18:17,638 TWO KIDS FELL OUT OF THE 463 00:18:17,638 --> 00:18:20,207 FEATURES, WE LOOKED AT MOTHERS, 464 00:18:20,207 --> 00:18:23,343 BOTH WERE CHRONIC ALCOHOL WOMEN. 465 00:18:23,343 --> 00:18:24,745 WE REPORTED THESE IN " THE 466 00:18:24,745 --> 00:18:26,947 LANCET," AND LET ME JUST SHOW 467 00:18:26,947 --> 00:18:28,248 YOU THIS PATTERN OF ABNORMALITY. 468 00:18:28,248 --> 00:18:31,752 THIS IS THE PATTERN THAT WE SAW. 469 00:18:31,752 --> 00:18:33,620 THESE KIDS WERE GROWTH DEFICIENT 470 00:18:33,620 --> 00:18:36,790 WITH RESPECT TO BOTH GROWTH AT 471 00:18:36,790 --> 00:18:39,626 BIRTH, SO PRENATAL AS WELL AS 472 00:18:39,626 --> 00:18:41,295 POSTNATAL GROWTH DEFICIENCY SO 473 00:18:41,295 --> 00:18:42,596 THEY CONTINUED TO BE SMALL 474 00:18:42,596 --> 00:18:44,364 DESPITE THE FACT THEY WERE NO 475 00:18:44,364 --> 00:18:48,302 LONGER EXPOSED IN ANY WAY TO THE 476 00:18:48,302 --> 00:18:49,069 ALCOHOL, AND THEN MICROCEPHALY, 477 00:18:49,069 --> 00:18:51,905 A FANCY WORD FOR SMALL HEAD 478 00:18:51,905 --> 00:18:53,307 CIRCUMFERENCE AND THEY HAD 479 00:18:53,307 --> 00:18:53,974 TYPICAL FACIAL FEATURES WHICH 480 00:18:53,974 --> 00:18:56,610 I'M GOING TO SHOW IN MORE DETAIL 481 00:18:56,610 --> 00:19:00,481 IN A MINUTE, WHICH INCLUDED 482 00:19:00,481 --> 00:19:08,989 SHORT PALPEBRAL FISSURES, LONG 483 00:19:08,989 --> 00:19:16,763 SMOOTH PHIL TRUM, THIN 484 00:19:16,763 --> 00:19:17,631 VERMILION. 485 00:19:17,631 --> 00:19:18,732 THIS IS MY SECOND BORN SON, HE 486 00:19:18,732 --> 00:19:20,501 DOES NOT HAVE THE FETAL ALCOHOL 487 00:19:20,501 --> 00:19:22,569 SYNDROME BUT I'M GOING TO SHOW 488 00:19:22,569 --> 00:19:25,739 YOU WHAT I -- NO POINTER HERE, 489 00:19:25,739 --> 00:19:27,374 IS THERE? 490 00:19:27,374 --> 00:19:27,908 OKAY. 491 00:19:27,908 --> 00:19:29,776 JUST TO SHOW YOU, AND I'M GOING 492 00:19:29,776 --> 00:19:33,614 TO YELL BUT I'LL WALK OVER HERE 493 00:19:33,614 --> 00:19:34,181 IF THAT'S OKAY. 494 00:19:34,181 --> 00:19:37,985 CAN YOU HEAR ME? 495 00:19:37,985 --> 00:19:38,185 OKAY. 496 00:19:38,185 --> 00:19:41,255 I DON'T KNOW ABOUT THE PEOPLE 497 00:19:41,255 --> 00:19:41,488 ONLINE. 498 00:19:41,488 --> 00:19:44,558 (INAUDIBLE) 499 00:19:44,558 --> 00:19:48,195 I'M GOING TO WALK OUT HERE. 500 00:19:48,195 --> 00:19:52,900 ALL RIGHT. 501 00:19:52,900 --> 00:19:54,868 SO, BASICALLY THIS IS -- 502 00:19:54,868 --> 00:20:00,541 (INAUDIBLE) 503 00:20:00,541 --> 00:20:01,408 ALL RIGHT. 504 00:20:01,408 --> 00:20:03,076 SO, THIS IS A NORMAL FACE, TO 505 00:20:03,076 --> 00:20:08,549 SHOW WHAT I MEAN BY THESE 506 00:20:08,549 --> 00:20:09,616 UNUSUAL FEATURES. 507 00:20:09,616 --> 00:20:11,485 THE FISSURE IS FROM INNER CORNER 508 00:20:11,485 --> 00:20:13,554 OF THE EYE TO OUTER CORNER OF 509 00:20:13,554 --> 00:20:19,026 THE EYE, NOT UP AND DOWN, IT'S 510 00:20:19,026 --> 00:20:19,593 ACROSS. 511 00:20:19,593 --> 00:20:22,196 THE FILLTRUM IS FROM HERE TO 512 00:20:22,196 --> 00:20:24,631 HERE, YOU SEE VERTICAL RIDGES 513 00:20:24,631 --> 00:20:25,732 YOU'LL FEEL IN YOURSELF WHEN YOU 514 00:20:25,732 --> 00:20:33,507 RUN YOUR FINGER OVER YOUR 515 00:20:33,507 --> 00:20:34,841 FILTRUM AND CUPID'S BOW OF THE 516 00:20:34,841 --> 00:20:39,213 UPPER LIP WHICH IS SO NORMAL. 517 00:20:39,213 --> 00:20:42,716 THANK YOU. 518 00:20:42,716 --> 00:20:42,916 SORRY. 519 00:20:42,916 --> 00:20:44,985 SO THIS IS WHAT A NORMAL FACE 520 00:20:44,985 --> 00:20:45,552 LOOKS LIKE. 521 00:20:45,552 --> 00:20:48,055 AND NOW I'M GOING TO SHOW YOU A 522 00:20:48,055 --> 00:20:51,124 PICTURE OF A CHILD WITH A FETAL 523 00:20:51,124 --> 00:20:52,025 ALCOHOL SYNDROME. 524 00:20:52,025 --> 00:20:55,495 AND HERE HE IS. 525 00:20:55,495 --> 00:21:01,101 8-YEAR-OLD BOY, YOU CAN SEE -- 526 00:21:01,101 --> 00:21:02,302 YOU PROBABLY CAN'T TELL THE 527 00:21:02,302 --> 00:21:03,704 FISSURES ARE SHORT BUT THEY ARE, 528 00:21:03,704 --> 00:21:07,574 HE HAS A LONG SMOOTH FILTRUM, 529 00:21:07,574 --> 00:21:10,077 LACKS VERTICAL RIDGES, YOU CAN 530 00:21:10,077 --> 00:21:12,679 SEE ACROSS HIS UPPER LIP THIN 531 00:21:12,679 --> 00:21:16,750 AND LACKS THE CUPID'S BOW 532 00:21:16,750 --> 00:21:17,251 CONFIGURATION. 533 00:21:17,251 --> 00:21:24,057 IT'S A DISTINCTIVE -- IT'S QUITE 534 00:21:24,057 --> 00:21:27,027 A DISTINCTIVE FACES BUT PRETTY 535 00:21:27,027 --> 00:21:28,128 DISTINCTIVE BUT VERY SUBTLE 536 00:21:28,128 --> 00:21:28,562 ABNORMALITIES. 537 00:21:28,562 --> 00:21:30,631 ABOUT THAT TIME WE WERE ABOUT 538 00:21:30,631 --> 00:21:41,041 FOUR WEEKS AFTER WE HAD 539 00:21:43,277 --> 00:21:44,745 INITIALLY BUILT THIS. 540 00:21:44,745 --> 00:21:47,047 FOUR WEEKS OUT FROM WHEN WE HAD 541 00:21:47,047 --> 00:21:48,448 INITIALLY SEEN THIS DISORDER, 542 00:21:48,448 --> 00:21:51,652 AND DAVE SAID, KEN, WE NEED TO 543 00:21:51,652 --> 00:21:54,054 GET A PSYCHOLOGIST BECAUSE THESE 544 00:21:54,054 --> 00:21:57,557 KIDS ALL HAVE INTELLECTUAL 545 00:21:57,557 --> 00:21:57,858 DEFICIENCY. 546 00:21:57,858 --> 00:22:00,961 AND SO I LOOKED AROUND, AND I 547 00:22:00,961 --> 00:22:11,438 CAME UP WITH THIS LADY, ANN 548 00:22:15,142 --> 00:22:15,876 PICKIWIDZ STROSGOTH, RECENTLY 549 00:22:15,876 --> 00:22:17,911 DIED, DID AS MUCH FOR THIS 550 00:22:17,911 --> 00:22:20,080 DISORDER AS ANYBODY THAT I KNOW. 551 00:22:20,080 --> 00:22:22,382 AND SHE DID THE NEUROBEHAVIORAL 552 00:22:22,382 --> 00:22:24,017 TESTING ON SEVEN OF THESE 553 00:22:24,017 --> 00:22:26,653 CHILDREN, THE CHILD FROM DAYTON, 554 00:22:26,653 --> 00:22:28,955 OHIO, SHE DIDN'T. 555 00:22:28,955 --> 00:22:33,527 AND THIS IS FROM A TABLE IN OUR 556 00:22:33,527 --> 00:22:40,000 FIRST PAPER IN "THE LANCET," IN 557 00:22:40,000 --> 00:22:40,200 1973. 558 00:22:40,200 --> 00:22:40,901 THANK YOU. 559 00:22:40,901 --> 00:22:42,235 ALL RIGHT. 560 00:22:42,235 --> 00:22:44,838 YOU SEE HERE WHAT WE HAVE 561 00:22:44,838 --> 00:22:47,007 CONTINUED TO SEE TODAY, IF YOU 562 00:22:47,007 --> 00:22:49,209 LOOK ACROSS THERE AT I.Q. OR 563 00:22:49,209 --> 00:22:53,814 MDI, YOU SEE THREE OF THESE 564 00:22:53,814 --> 00:22:56,116 CHILDREN ARE INTELLECTUALLY 565 00:22:56,116 --> 00:22:58,685 DISABLED, BUT THE OTHER FOUR ARE 566 00:22:58,685 --> 00:23:01,388 WITHIN THE NORMAL RANGE. 567 00:23:01,388 --> 00:23:04,558 THEY ARE NOT I.Q. SCORES THAT 568 00:23:04,558 --> 00:23:06,326 ARE HIGH BUT CLEARLY WITHIN THE 569 00:23:06,326 --> 00:23:07,294 NORMAL RANGE, THAT HAS CONTINUED 570 00:23:07,294 --> 00:23:09,496 TO BE THE CASE IN INDIVIDUALS 571 00:23:09,496 --> 00:23:11,698 THAT WE SEE WITH THIS DISORDER, 572 00:23:11,698 --> 00:23:13,800 THEIR I.Q. SCORES FREQUENTLY 573 00:23:13,800 --> 00:23:16,636 SOMEWHERE IN THE HIGH 70s AND 574 00:23:16,636 --> 00:23:17,938 LOW '80s BUT FOR THE MOST PART 575 00:23:17,938 --> 00:23:23,076 THESE KIDS DO NOT HAVE I.Q. 576 00:23:23,076 --> 00:23:25,245 SCORES LESS THAN 70. 577 00:23:25,245 --> 00:23:28,682 MAYBE 50% DO BUT THE REMAINDER 578 00:23:28,682 --> 00:23:34,588 DO, AND MAJORITY OF THEM ALSO 579 00:23:34,588 --> 00:23:35,355 ARE NORMAL. 580 00:23:35,355 --> 00:23:37,324 NOW I WANT TO SAY A BRIEF WORD 581 00:23:37,324 --> 00:23:39,726 ABOUT REACTIONS TO RECOGNITION 582 00:23:39,726 --> 00:23:41,161 OF THIS DISORDER. 583 00:23:41,161 --> 00:23:47,601 REACTION, I MUST TELL YOU, QUITE 584 00:23:47,601 --> 00:23:49,603 SURPRISING TO ME BUT SHOULDN'T 585 00:23:49,603 --> 00:23:49,770 BE. 586 00:23:49,770 --> 00:23:51,004 IT WAS DISBELIEF. 587 00:23:51,004 --> 00:23:54,508 I WILL NEVER FORGET GIVING A 588 00:23:54,508 --> 00:23:56,910 TALK SOON AFTER, SOMETIME I 589 00:23:56,910 --> 00:24:00,514 THINK IN MAY, TO THE SOCIETY FOR 590 00:24:00,514 --> 00:24:02,149 PEDIATRIC RESEARCH THAT WAS IN 591 00:24:02,149 --> 00:24:03,383 SAN FRANCISCO THAT YEAR. 592 00:24:03,383 --> 00:24:06,520 AND I WAS SCARED TO DEATH. 593 00:24:06,520 --> 00:24:09,489 I WILL TELL YOU IT WAS THE FIRST 594 00:24:09,489 --> 00:24:10,924 TALK I'VE EVER GIVEN, THERE WERE 595 00:24:10,924 --> 00:24:12,159 ABOUT A THOUSAND PEDIATRICIANS 596 00:24:12,159 --> 00:24:12,793 IN THE AUDIENCE. 597 00:24:12,793 --> 00:24:14,528 I STOOD UP THERE AND GAVE MY 598 00:24:14,528 --> 00:24:14,861 TALK. 599 00:24:14,861 --> 00:24:16,062 I HAD TEN MINUTES TO TALK AND 600 00:24:16,062 --> 00:24:18,031 GAVE MY TALK. 601 00:24:18,031 --> 00:24:24,037 AND I EVEN BECAME MORE SCARED 602 00:24:24,037 --> 00:24:25,505 BECAUSE HANDS SHOT UP ALL OVER 603 00:24:25,505 --> 00:24:27,073 THE AUDIENCE, NOT A PERSON HAD 604 00:24:27,073 --> 00:24:28,775 ANYTHING GOOD TO SAY ABOUT MY 605 00:24:28,775 --> 00:24:29,142 TALK. 606 00:24:29,142 --> 00:24:31,211 EVERYBODY SAID I WAS CRAZY. 607 00:24:31,211 --> 00:24:33,280 DAVE SMITH WAS CRAZY. 608 00:24:33,280 --> 00:24:35,248 THAT THIS WAS CLEARLY A VIRUS, 609 00:24:35,248 --> 00:24:36,983 PEOPLE HAD BEEN DRINKING ALCOHOL 610 00:24:36,983 --> 00:24:38,418 FOR YEARS, HUNDREDS OF YEARS, 611 00:24:38,418 --> 00:24:39,853 AND NOBODY HAD EVER DESCRIBED 612 00:24:39,853 --> 00:24:43,657 ANYTHING LIKE THIS. 613 00:24:43,657 --> 00:24:47,494 SO, IT WAS A GREAT SCARE FOR ME. 614 00:24:47,494 --> 00:24:49,129 AND YET IT CLEARLY WAS NOT -- WE 615 00:24:49,129 --> 00:24:50,564 WERE NOT THE FIRST PEOPLE TO 616 00:24:50,564 --> 00:24:52,232 DESCRIBE THIS DISORDER. 617 00:24:52,232 --> 00:24:54,768 I JUST WANT TO MAKE YOU AWARE OF 618 00:24:54,768 --> 00:24:56,036 A FEW THINGS HERE. 619 00:24:56,036 --> 00:24:58,572 THIS IS BRAVE NEW WORLD. 620 00:24:58,572 --> 00:25:04,711 WRITTEN I THINK IN THE '40s. 621 00:25:04,711 --> 00:25:08,014 AND TWO KIDS ARE TALKING HERE. 622 00:25:08,014 --> 00:25:18,325 IF I CAN FIND IT. 623 00:25:18,859 --> 00:25:20,861 HE'S SO UGLY, BUT I RATHER LIKE 624 00:25:20,861 --> 00:25:22,629 HIS LOOKS. 625 00:25:22,629 --> 00:25:26,099 AND THEN SO SMALL, A GRIM AS, 626 00:25:26,099 --> 00:25:27,634 SMALLNESS WAS SO HORRIBLY AND 627 00:25:27,634 --> 00:25:28,401 TYPICALLY LOW CAST. 628 00:25:28,401 --> 00:25:30,937 I THINK THAT'S RATHER SWEET 629 00:25:30,937 --> 00:25:35,208 ONE FEELS ONE WOULD LIKE TO PET 630 00:25:35,208 --> 00:25:36,943 HIM, LIKE A CAT. 631 00:25:36,943 --> 00:25:38,378 SHE WAS SHOCKED. 632 00:25:38,378 --> 00:25:43,817 SOMEBODY MADE A MISTAKE WHEN HE 633 00:25:43,817 --> 00:25:46,019 WAS IN THE BOTTLE, PUT ALCOHOL 634 00:25:46,019 --> 00:25:51,091 IN THE BLOOD SURROGATE, THAT'S 635 00:25:51,091 --> 00:25:51,725 WHY HE'S STUNTED. 636 00:25:51,725 --> 00:25:55,028 AND IN THE OLD TESTAMENT, JUDGES 637 00:25:55,028 --> 00:25:56,530 CHAPTER 13, VERSE 7, HE SAID TO 638 00:25:56,530 --> 00:25:58,398 ME, YOU WILL BECOME PREGNANT AND 639 00:25:58,398 --> 00:26:01,902 HAVE A SON, YOU MUST DRINK NO 640 00:26:01,902 --> 00:26:03,970 WINE OR ANY OTHER ALCOHOLIC 641 00:26:03,970 --> 00:26:05,772 DRINK, NOR EAT ANY FORBIDDEN 642 00:26:05,772 --> 00:26:08,141 FOOD, FOR YOUR SON WILL BE 643 00:26:08,141 --> 00:26:10,010 DEDICATED TO GOD AS A NAZARITE 644 00:26:10,010 --> 00:26:11,545 FROM THE MOMENT OF HIS BIRTH 645 00:26:11,545 --> 00:26:17,117 UNTIL THE DAY OF HIS DEATH. 646 00:26:17,117 --> 00:26:21,588 SO, THEY WERE WRONG, THIS 647 00:26:21,588 --> 00:26:23,223 DISORDER WAS WELL KNOWN, HADN'T 648 00:26:23,223 --> 00:26:24,324 BEEN CALLED FETAL ALCOHOL 649 00:26:24,324 --> 00:26:25,191 SYNDROME BUT HAD BEEN AROUND 650 00:26:25,191 --> 00:26:26,393 QUITE A WHILE. 651 00:26:26,393 --> 00:26:27,827 PEOPLE STARTED LOOKING AT IT 652 00:26:27,827 --> 00:26:30,230 SERIOUSLY SOON AFTER THAT, 653 00:26:30,230 --> 00:26:31,998 RIGOROUSLY DELINEATED, PATTERN 654 00:26:31,998 --> 00:26:35,068 OF HUMAN MALFORMATION AS WELL AS 655 00:26:35,068 --> 00:26:36,670 NEUROBEHAVIORAL DEPUTY SITS. 656 00:26:36,670 --> 00:26:40,340 IN 2000 ERNIE ABLE IN A PAYABLE 657 00:26:40,340 --> 00:26:43,710 IN ALCOHOL AND ALCOHOLISM STATED 658 00:26:43,710 --> 00:26:45,078 THAT THE FETAL ALCOHOL SYNDROME 659 00:26:45,078 --> 00:26:47,247 DEVELOPED INTO A SOCIAL PROBLEM, 660 00:26:47,247 --> 00:26:48,682 AND THAT IS ACTIVITIES RISE TO A 661 00:26:48,682 --> 00:26:50,750 LEVEL IN WHICH SOMEONE OR SOME 662 00:26:50,750 --> 00:26:53,253 GROUP ATTRIBUTES HARM TO THOSE 663 00:26:53,253 --> 00:26:53,820 ACTIVITIES, CAUSING THE 664 00:26:53,820 --> 00:26:56,156 GOVERNMENT TO STOP THEM AND -- 665 00:26:56,156 --> 00:26:57,424 CALLING ON THE GOVERNMENT TO 666 00:26:57,424 --> 00:27:01,027 STOP THEM, I CAN SEE THAT, THAT 667 00:27:01,027 --> 00:27:02,262 MADE SENSE. 668 00:27:02,262 --> 00:27:03,997 BUT THEY SAID IN THE SAME 669 00:27:03,997 --> 00:27:05,966 ARTICLE THAT THE FETAL ALCOHOL 670 00:27:05,966 --> 00:27:07,934 SYNDROME WAS A MORAL -- LED TO A 671 00:27:07,934 --> 00:27:09,169 MORAL PANIC WHICH SEEMED A 672 00:27:09,169 --> 00:27:11,371 LITTLE BIT OVER THE EDGE TO ME. 673 00:27:11,371 --> 00:27:13,540 ON A MORAL PANIC IS ALLEGED 674 00:27:13,540 --> 00:27:15,208 BREAKDOWN IN PUBLIC MORALITY, 675 00:27:15,208 --> 00:27:17,077 HEIGHTENED LEVEL OF PUBLIC 676 00:27:17,077 --> 00:27:20,013 CONCERN, AND I MUST SAY TO YOU 677 00:27:20,013 --> 00:27:22,215 THAT I BELIEVE NOW AND 678 00:27:22,215 --> 00:27:24,517 UNDERSTAND WHY THEY CALLED IT A 679 00:27:24,517 --> 00:27:25,585 MORAL PANIC. 680 00:27:25,585 --> 00:27:32,292 AND MAYBE KATHY WILL TALK ABOUT 681 00:27:32,292 --> 00:27:32,592 THAT. 682 00:27:32,592 --> 00:27:34,561 IT'S DEVELOPED, PEOPLE REACT TO 683 00:27:34,561 --> 00:27:37,097 IT IN HORRIBLE WAYS, I WILL TELL 684 00:27:37,097 --> 00:27:40,467 YOU. 685 00:27:40,467 --> 00:27:42,235 ALL RIGHT. 686 00:27:42,235 --> 00:27:43,737 SO, THAT WAS 1973. 687 00:27:43,737 --> 00:27:47,040 AND NOW I WANT TO TAKE YOU TO 688 00:27:47,040 --> 00:27:48,008 1996. 689 00:27:48,008 --> 00:27:50,110 WHEN THE INSTITUTE OF MEDICINE, 690 00:27:50,110 --> 00:27:51,978 NATIONAL ACADEMIES OF SCIENCE, 691 00:27:51,978 --> 00:27:55,849 DECIDED THEY WANTED TO GET 692 00:27:55,849 --> 00:27:57,050 INVOLVED IN MATERNAL DRINKING, 693 00:27:57,050 --> 00:28:00,186 AND THIS ISSUE, AND SO THEY PUT 694 00:28:00,186 --> 00:28:01,721 TOGETHER A COMMITTEE TO LOOK AT 695 00:28:01,721 --> 00:28:04,591 ALL OF THE LITERATURE FROM 1973 696 00:28:04,591 --> 00:28:07,193 UP TO 1996, AND THEY DECIDED 697 00:28:07,193 --> 00:28:08,395 THAT PRENATAL EXPOSURE TO 698 00:28:08,395 --> 00:28:10,030 ALCOHOL CAUSED A SPECTRUM OF 699 00:28:10,030 --> 00:28:13,466 DEFECTS, NOT ONE THING LIKE THE 700 00:28:13,466 --> 00:28:14,534 FETAL ALCOHOL SYNDROME. 701 00:28:14,534 --> 00:28:18,238 AND SO THEY TALKED ABOUT THIS AS 702 00:28:18,238 --> 00:28:19,773 AN UMBRELLA TERM. 703 00:28:19,773 --> 00:28:22,942 AT LEAST FETAL ALCOHOL SPECTRUM 704 00:28:22,942 --> 00:28:24,377 DISORDER, NOT A DIAGNOSIS BUT AN 705 00:28:24,377 --> 00:28:25,311 UMBRELLA TERM. 706 00:28:25,311 --> 00:28:27,180 AT ONE END OF THE SPECTRUM WAS 707 00:28:27,180 --> 00:28:29,115 FETAL ALCOHOL SYNDROME THAT I 708 00:28:29,115 --> 00:28:32,285 JUST DESCRIBED TO YOU, THEN 709 00:28:32,285 --> 00:28:34,354 PARTIAL FETAL ALCOHOL SYNDROME, 710 00:28:34,354 --> 00:28:37,757 WHICH WAS KIDS WHO HAD SOME 711 00:28:37,757 --> 00:28:38,758 FEATURES OF FETAL ALCOHOL SIPPED 712 00:28:38,758 --> 00:28:42,462 BUT NOT ENOUGH TO SAY IT'S THE 713 00:28:42,462 --> 00:28:43,663 FETAL ALCOHOL SYNDROME. 714 00:28:43,663 --> 00:28:47,067 AT THE OTHER END SPECTRUM 715 00:28:47,067 --> 00:28:47,434 ALCOHOL-RELATED 716 00:28:47,434 --> 00:28:49,569 NEURODEVELOPMENTAL DISORDER. 717 00:28:49,569 --> 00:28:51,971 SO, THIS LATTER, ALCOHOL-RELATED 718 00:28:51,971 --> 00:28:52,639 NEURODEVELOPMENTAL DISORDER, WE 719 00:28:52,639 --> 00:28:55,275 NOW KNOW IS BY FAR THE MOST 720 00:28:55,275 --> 00:28:56,576 COMMON DIAGNOSIS THAT FALLS 721 00:28:56,576 --> 00:28:58,445 UNDER THE UMBRELLA OF FETAL 722 00:28:58,445 --> 00:28:59,412 ALCOHOL SPECTRUM DISORDER. 723 00:28:59,412 --> 00:29:03,249 YOU SEE A LITTLE BOY HERE IN THE 724 00:29:03,249 --> 00:29:05,885 RIGHT SIDE OF THE SLIDE, OF THE 725 00:29:05,885 --> 00:29:07,754 SCREEN, WHO CLEARLY DOES NOT 726 00:29:07,754 --> 00:29:08,755 HAVE THE FETAL ALCOHOL SYNDROME 727 00:29:08,755 --> 00:29:10,390 BUT HAS BEEN VERY SEVERELY 728 00:29:10,390 --> 00:29:13,660 AFFECTED BY ALCOHOL. 729 00:29:13,660 --> 00:29:21,768 YOU CAN SEE PROBABLY HIS 730 00:29:21,768 --> 00:29:23,069 FISSURES OF NORMAL LENGTH, 731 00:29:23,069 --> 00:29:24,170 VERMILION BORDER LOOKS NORMAL, 732 00:29:24,170 --> 00:29:27,674 BUT HIS MOTHER WAS KNOWN TO 733 00:29:27,674 --> 00:29:29,442 DRINK ALCOHOL DURING HER 734 00:29:29,442 --> 00:29:31,177 PREGNANCY AND THAT'S REQUIRED 735 00:29:31,177 --> 00:29:35,115 FOR A DIAGNOSIS OF ARND, ALCOHOL 736 00:29:35,115 --> 00:29:36,549 RELATED NEURODEVELOPMENTAL 737 00:29:36,549 --> 00:29:37,150 DISORDER. 738 00:29:37,150 --> 00:29:37,684 INTELLECTUAL DISABILITIES, 739 00:29:37,684 --> 00:29:38,251 PROBLEMS WITH BEHAVIOR AND 740 00:29:38,251 --> 00:29:45,525 LEARNING WITH THE -- ARE THE 741 00:29:45,525 --> 00:29:46,426 FEATURES. 742 00:29:46,426 --> 00:29:50,997 THEY LACK GROWTH DEFICIENCY AND 743 00:29:50,997 --> 00:29:52,098 FACIAL FEATURE. 744 00:29:52,098 --> 00:29:56,269 NINE OUT OF TEN, THE MOST 745 00:29:56,269 --> 00:29:59,539 IMPORTANT THING, NINE OUT OF TEN 746 00:29:59,539 --> 00:30:01,775 INDIVIDUALS WITH FASD DO NOT 747 00:30:01,775 --> 00:30:06,880 HAVE FAS, THEY HAVE 748 00:30:06,880 --> 00:30:07,413 ALCOHOL-RELATED 749 00:30:07,413 --> 00:30:08,047 NEURODEVELOPMENTAL DISORDER AND 750 00:30:08,047 --> 00:30:10,350 THIS HAS BECOME KNOWN AS THE 751 00:30:10,350 --> 00:30:11,417 INVISIBLE DISORDER. 752 00:30:11,417 --> 00:30:12,652 90% OF KIDS WHO HAVE THIS 753 00:30:12,652 --> 00:30:13,953 DISORDER HAVE NONE OF THE 754 00:30:13,953 --> 00:30:15,989 PHYSICAL FEATURES, DO NOT HAVE 755 00:30:15,989 --> 00:30:17,090 GROWTH DEFICIENCY, AND THE 756 00:30:17,090 --> 00:30:18,591 DOCTOR WHO TAKES A LOOK AT THEM 757 00:30:18,591 --> 00:30:21,861 AND 3 OR 4 YEARS OF AGE HAS NO 758 00:30:21,861 --> 00:30:24,164 CLUE THAT THIS COULD BE RELATED 759 00:30:24,164 --> 00:30:26,065 IN ANY WAY TO PRENATAL ALCOHOL 760 00:30:26,065 --> 00:30:27,700 EXPOSURE BECAUSE THE CHILD DOES 761 00:30:27,700 --> 00:30:31,638 NOT HAVE THESE PHYSICAL 762 00:30:31,638 --> 00:30:31,971 FEATURES. 763 00:30:31,971 --> 00:30:33,406 THIS HAS BECOME A MAJOR PROBLEM 764 00:30:33,406 --> 00:30:35,041 AS FAR AS THIS DISORDER IS 765 00:30:35,041 --> 00:30:35,341 CONCERNED. 766 00:30:35,341 --> 00:30:37,210 IT'S WHY THE VAST MAJORITY OF 767 00:30:37,210 --> 00:30:39,412 KIDS WITH THIS DISORDER ARE NOT 768 00:30:39,412 --> 00:30:40,413 DIAGNOSED WITH THIS DISORDER, OR 769 00:30:40,413 --> 00:30:43,683 IF THEY ARE DIAGNOSED WITH 770 00:30:43,683 --> 00:30:45,318 SOMETHING IT'S AN INCORRECT 771 00:30:45,318 --> 00:30:45,585 DIAGNOSIS. 772 00:30:45,585 --> 00:30:48,488 NOW I WANT TO TELL YOU WHAT 773 00:30:48,488 --> 00:30:50,790 WE'RE DOING NOW OR IN THE 774 00:30:50,790 --> 00:30:53,092 PROCESS OF DEVELOPING NOW IN THE 775 00:30:53,092 --> 00:30:54,494 STATE OF CALIFORNIA, WITH THE 776 00:30:54,494 --> 00:30:56,129 OFFICE OF YOUTH AND COMMUNITY 777 00:30:56,129 --> 00:30:57,130 RESTORATION. 778 00:30:57,130 --> 00:30:58,331 SO, WHAT I'M GOING TO TALK ABOUT 779 00:30:58,331 --> 00:31:02,402 FOR THE REST OF TIME IS NOT 780 00:31:02,402 --> 00:31:08,441 HISSAL, IT'S -- HISTORICAL, IT'S 781 00:31:08,441 --> 00:31:11,177 WHAT'S GOING ON NOW, TO PROMOTE 782 00:31:11,177 --> 00:31:12,045 TRAUMA RESPONSIVE, CULTURALLY 783 00:31:12,045 --> 00:31:13,146 INFORMED SERVICES FOR YOUTH 784 00:31:13,146 --> 00:31:15,114 INVOLVED IN THE JUVENILE SYSTEM 785 00:31:15,114 --> 00:31:16,216 THAT SUPPORT YOUTH'S SUCCESSFUL 786 00:31:16,216 --> 00:31:17,417 TRANSIT TO ADULT LIFE. 787 00:31:17,417 --> 00:31:22,455 WE IN OUR GROUP IN SAN DIEGO ARE 788 00:31:22,455 --> 00:31:23,423 COLLABORATING WITH OYCR TO 789 00:31:23,423 --> 00:31:27,060 DEVELOP A PILOT PROGRAM TO 790 00:31:27,060 --> 00:31:28,895 DIAGNOSE FASD THROUGHOUT 791 00:31:28,895 --> 00:31:30,196 CALIFORNIA, DONE IN SAN DIEGO, 792 00:31:30,196 --> 00:31:33,166 SUBJECTS WILL COME FROM CHILD 793 00:31:33,166 --> 00:31:33,733 WELFARE SERVICES, PROBATION 794 00:31:33,733 --> 00:31:35,235 DEPARTMENT, 100 KIDS FROM EACH 795 00:31:35,235 --> 00:31:38,638 OF THOSE, AND GIVEN THE FACT 90% 796 00:31:38,638 --> 00:31:41,040 OF INDIVIDUALS WITH FASD HAVE 797 00:31:41,040 --> 00:31:47,413 ARND, A RAPID SENSITIVE TESTING 798 00:31:47,413 --> 00:31:49,382 APPROACH TO DIAGNOSIS OF ARND 799 00:31:49,382 --> 00:31:49,916 WILL BE USED. 800 00:31:49,916 --> 00:31:52,518 WE'RE NOT GOING TO WORRY ABOUT 801 00:31:52,518 --> 00:31:54,621 FAS, THAT'S 10% OF THE KIDS. 802 00:31:54,621 --> 00:32:02,829 IF WE CAN GET 90 90% AFFECTED 803 00:32:02,829 --> 00:32:04,931 BY ALCOHOL WE'LL FORGET 10% FAS, 804 00:32:04,931 --> 00:32:06,532 THEY WILL PROBABLY BE DIAGNOSED 805 00:32:06,532 --> 00:32:08,101 BY THEIR PHYSICIAN. 806 00:32:08,101 --> 00:32:09,535 TESTING FOR BEHAVIORAL 807 00:32:09,535 --> 00:32:11,404 IMPAIRMENT OF FASD DOES NOT 808 00:32:11,404 --> 00:32:13,306 REQUIRE A NEUROPSYCHOLOGIST AND 809 00:32:13,306 --> 00:32:15,441 CAN BE DONE BY A TRAINED MEDICAL 810 00:32:15,441 --> 00:32:22,315 PROVIDER LIKE A SOCIAL WORKER IN 811 00:32:22,315 --> 00:32:27,387 TWO HOURS. 812 00:32:27,387 --> 00:32:27,820 ALL RIGHT. 813 00:32:27,820 --> 00:32:30,323 SOMEONE WOULD BE TRAINED TO 814 00:32:30,323 --> 00:32:32,292 ADMINISTER VINELAND ADAPTIVE 815 00:32:32,292 --> 00:32:34,060 BEHAVIOR SCALES AND CBCL, AND 816 00:32:34,060 --> 00:32:37,830 HERE IS THE CRITERIA. 817 00:32:37,830 --> 00:32:39,632 YOU'VE GOT TO RECOGNIZE FASD OR 818 00:32:39,632 --> 00:32:40,867 ARND IN THIS PARTICULAR CASE CAN 819 00:32:40,867 --> 00:32:43,236 BE DIAGNOSED IN TWO WAYS, ONE 820 00:32:43,236 --> 00:32:45,638 WAY IS THE COGNITIVE APPROACH 821 00:32:45,638 --> 00:32:47,206 THAT REQUIRES NEUROPSYCHOLOGIST 822 00:32:47,206 --> 00:32:48,374 TO DO NEUROBEHAVIORAL TESTING 823 00:32:48,374 --> 00:32:51,577 AND PHYSICIAN WHO KNOWS A LOT 824 00:32:51,577 --> 00:32:53,446 ABOUT FASD WHO WILL DO THE 825 00:32:53,446 --> 00:32:54,981 PHYSICAL EXAMINATION, SOMETHING 826 00:32:54,981 --> 00:32:56,416 THAT'S GOING TO PROBABLY TAKE A 827 00:32:56,416 --> 00:32:58,484 LOT OF MONEY THAT'S GOING TO 828 00:32:58,484 --> 00:33:01,754 TAKE A LOT OF TIME, AND THE 829 00:33:01,754 --> 00:33:03,122 NEUROPSYCHOLOGIST FOR ONE 830 00:33:03,122 --> 00:33:04,924 PROBABLY HAS SIX TO EIGHT-MONTH 831 00:33:04,924 --> 00:33:08,328 WAITING LIST AS DOES THE DOCTOR. 832 00:33:08,328 --> 00:33:09,963 SO BASICALLY THAT'S ONE WAY YOU 833 00:33:09,963 --> 00:33:11,364 CAN DIAGNOSE IT. 834 00:33:11,364 --> 00:33:11,664 COGNITIVELY. 835 00:33:11,664 --> 00:33:13,566 THE OTHER WAY YOU CAN DIAGNOSE 836 00:33:13,566 --> 00:33:16,002 IT IS JUST BASED ON THE 837 00:33:16,002 --> 00:33:17,236 BEHAVIORAL IMPAIRMENTS. 838 00:33:17,236 --> 00:33:20,173 THEY INCLUDE IMPAIRMENT IN MOOD 839 00:33:20,173 --> 00:33:23,076 OR BEHAVIORAL REGULATION, 840 00:33:23,076 --> 00:33:25,078 INCLUDE ATTENTION DEFICIT 841 00:33:25,078 --> 00:33:25,745 DISORDER, AND IMPAIRMENT IN 842 00:33:25,745 --> 00:33:26,846 IMPULSE CONTROL. 843 00:33:26,846 --> 00:33:29,248 THIS CAN BE DONE AS I SAID BY 844 00:33:29,248 --> 00:33:32,185 SOMEBODY WHO CAN BE TRAINED TO 845 00:33:32,185 --> 00:33:36,689 DO A VINELAND, TRAINED TO DO A 846 00:33:36,689 --> 00:33:37,023 CBCL. 847 00:33:37,023 --> 00:33:39,425 IN THIS PILOT PROJECT WE'LL LOOK 848 00:33:39,425 --> 00:33:42,295 AT 100 KIDS FROM FOSTER CARE, 849 00:33:42,295 --> 00:33:43,363 100 KIDS FROM PROBATION. 850 00:33:43,363 --> 00:33:47,633 AND THE SAME SUBJECTS THAT WE DO 851 00:33:47,633 --> 00:33:51,471 THIS APPROACH ON WILL ALSO BE 852 00:33:51,471 --> 00:33:51,871 GIVEN TRADITIONAL 853 00:33:51,871 --> 00:33:53,673 NEUROPSYCHOLOGICAL TESTING, AND 854 00:33:53,673 --> 00:33:55,174 WITH THE TWO TESTS PROTOCOLS ON 855 00:33:55,174 --> 00:34:01,681 EACH SUNDAY -- SUBJECT WE HOPE 856 00:34:01,681 --> 00:34:08,221 TO SHOW IT IS AS PROFICIENT AS 857 00:34:08,221 --> 00:34:09,255 TRADITIONAL NEUROPSYCHOLOGICAL 858 00:34:09,255 --> 00:34:11,524 TEST, TO DEVELOP A PROGRAM USED 859 00:34:11,524 --> 00:34:12,158 THROUGHOUT CALIFORNIA TO 860 00:34:12,158 --> 00:34:16,195 DIAGNOSE 90% OF KIDS IN 861 00:34:16,195 --> 00:34:17,096 CALIFORNIA WITH AN FASD. 862 00:34:17,096 --> 00:34:19,599 NOW I WANT TO SAY A WORD ABOUT 863 00:34:19,599 --> 00:34:21,401 PREVENTION, I'M GOING TO BE IN 864 00:34:21,401 --> 00:34:24,370 TROUBLE HERE SO I'M GOING 865 00:34:24,370 --> 00:34:24,670 QUICKLY. 866 00:34:24,670 --> 00:34:26,572 SO HERE ARE THREE STRATEGIES FOR 867 00:34:26,572 --> 00:34:27,673 REDUCTION OF RISKY ALCOHOL USE 868 00:34:27,673 --> 00:34:29,942 IN U.S. WOMEN. 869 00:34:29,942 --> 00:34:32,678 FIRST IS I THINK WE ALL KNOW THE 870 00:34:32,678 --> 00:34:33,646 SURGEON GENERAL'S WARNING, 871 00:34:33,646 --> 00:34:36,416 WARNING LABELS ON CANS AND 872 00:34:36,416 --> 00:34:39,452 BOTTLES, IN BARS AND WHERE 873 00:34:39,452 --> 00:34:41,087 ALCOHOL IS SOLD, AND YOU SEE 874 00:34:41,087 --> 00:34:43,523 THAT ON THE NEXT SLIDE OR A 875 00:34:43,523 --> 00:34:46,159 PICTURE OF THAT HERE ON THIS 876 00:34:46,159 --> 00:34:47,026 NEXT SLIDE. 877 00:34:47,026 --> 00:34:50,763 BUDWEISER CAN. 878 00:34:50,763 --> 00:34:54,367 THE OTHER IS VONS SUPERMARKET IN 879 00:34:54,367 --> 00:34:55,468 SAN DIEGO, SEE THE GOVERNMENT 880 00:34:55,468 --> 00:34:56,869 WARNING AND YOU KNOW BIT. 881 00:34:56,869 --> 00:34:58,404 WOMEN SHOWN IN NUMEROUS STUDIES 882 00:34:58,404 --> 00:35:01,040 KNOW TO BE WELL AWARE OF THESE 883 00:35:01,040 --> 00:35:01,474 WARNINGS. 884 00:35:01,474 --> 00:35:05,078 BUT HAVE BEEN SHOWN TO NOT ACT 885 00:35:05,078 --> 00:35:05,411 UPON THEM. 886 00:35:05,411 --> 00:35:07,814 THUS THEY HAVE NOT CHANGED THEIR 887 00:35:07,814 --> 00:35:10,450 BEHAVIOR BASED ON THESE 888 00:35:10,450 --> 00:35:10,850 WARNINGS. 889 00:35:10,850 --> 00:35:11,884 WHICH IS VERY UNFORTUNATE. 890 00:35:11,884 --> 00:35:13,519 THE SECOND THING I WANT TO 891 00:35:13,519 --> 00:35:17,323 MENTION IS PROJECT CHOICES. 892 00:35:17,323 --> 00:35:18,324 THIS HAS WORKED. 893 00:35:18,324 --> 00:35:22,695 THIS COMES FROM A STUDY 894 00:35:22,695 --> 00:35:23,596 PUBLISHED IN 2003. 895 00:35:23,596 --> 00:35:27,500 AND THE IDEA IS TO REDUCE RISK 896 00:35:27,500 --> 00:35:28,935 OF ALCOHOL-EXPOSED PREGNANCY, A 897 00:35:28,935 --> 00:35:30,803 STUDY OF MOTIVATIONAL 898 00:35:30,803 --> 00:35:32,004 INTERVENTION IN COMMUNITY 899 00:35:32,004 --> 00:35:35,741 SETTINGS, AS I SAID PUBLISHED IN 900 00:35:35,741 --> 00:35:35,942 2003. 901 00:35:35,942 --> 00:35:38,911 IN THIS STUDY THEY EVALUATED A 902 00:35:38,911 --> 00:35:40,246 MOTIVATIONAL INTERVENTION FOR 903 00:35:40,246 --> 00:35:43,516 DECREASING DRINKING AND/OR 904 00:35:43,516 --> 00:35:44,951 INCREASING EFFECTIVE 905 00:35:44,951 --> 00:35:46,052 CONTRACEPTION, IN NON-PREGNANT 906 00:35:46,052 --> 00:35:48,454 WOMEN AT RISK FOR 907 00:35:48,454 --> 00:35:49,755 ALCOHOL-EXPOSED PREGNANCY AND 908 00:35:49,755 --> 00:35:50,957 SHOWED THAT A MOTIVATIONAL 909 00:35:50,957 --> 00:35:52,391 INTERVENTION CAN BE SUCCESSFUL 910 00:35:52,391 --> 00:35:56,529 IN REDUCING RISK FOR AN 911 00:35:56,529 --> 00:35:58,631 ALCOHOL-EXPOSED PREGNANCY IN 69% 912 00:35:58,631 --> 00:36:01,367 OF THE WOMEN BY REDUCING THEIR 913 00:36:01,367 --> 00:36:03,669 ALCOHOL INTAKE, INCREASING THEIR 914 00:36:03,669 --> 00:36:04,704 USE OF EFFECTIVE CONTRACEPTION, 915 00:36:04,704 --> 00:36:07,840 OR BOTH, AND I SUSPECT YOU KNOW 916 00:36:07,840 --> 00:36:08,908 WHAT WORKED THE BEST. 917 00:36:08,908 --> 00:36:13,179 AND THAT WAS NOT TO REDUCE THEIR 918 00:36:13,179 --> 00:36:15,715 ALCOHOL CONSUMPTION BUT TO USE 919 00:36:15,715 --> 00:36:18,117 EFFECTIVE CONTRACEPTION AND THE 920 00:36:18,117 --> 00:36:20,720 WORD "EFFECTIVE" IS CLEARLY AN 921 00:36:20,720 --> 00:36:21,420 ISSUE HERE. 922 00:36:21,420 --> 00:36:23,456 AND THEN THE THING I REALLY WANT 923 00:36:23,456 --> 00:36:26,759 TO STRESS AS FAR AS PREVENTION 924 00:36:26,759 --> 00:36:28,094 IS CONCERNED, DECREASING THE 925 00:36:28,094 --> 00:36:29,462 TIME BETWEEN CONCEPTION AND 926 00:36:29,462 --> 00:36:30,163 PREGNANCY AWARENESS. 927 00:36:30,163 --> 00:36:34,100 I THINK IF WE COULD DO THIS, 928 00:36:34,100 --> 00:36:35,368 THIS WOULD REALLY CHANGE THE 929 00:36:35,368 --> 00:36:36,969 PLAYING FIELD AS FAR AS THIS 930 00:36:36,969 --> 00:36:37,837 DISORDER IS CONCERNED. 931 00:36:37,837 --> 00:36:40,106 THIS IS A STUDY THAT WAS 932 00:36:40,106 --> 00:36:41,140 PUBLISHED IN 2017 FROM 933 00:36:41,140 --> 00:36:42,241 AUSTRALIA, BUT THERE ARE A 934 00:36:42,241 --> 00:36:43,743 NUMBER OF STUDIES LIKE THIS THAT 935 00:36:43,743 --> 00:36:45,378 HAVE BEEN PUBLISHED. 936 00:36:45,378 --> 00:36:46,379 SO THE AVERAGE GESTATIONAL AGE 937 00:36:46,379 --> 00:36:48,080 AT THE TIME OF PREGNANCY 938 00:36:48,080 --> 00:36:51,751 AWARENESS IN THIS COUNTRY AND IN 939 00:36:51,751 --> 00:36:54,387 AUSTRALIA WAS 5.5 TO SIX WEEKS. 940 00:36:54,387 --> 00:37:01,694 THIS IS THE BIG ISSUE HERE, THIS 941 00:37:01,694 --> 00:37:03,129 IS FANTASTIC, IRRESPECKIVE OF 942 00:37:03,129 --> 00:37:04,530 WHERE PREGNANCY WAS STOPPED OR 943 00:37:04,530 --> 00:37:06,732 NOT THE VAST MAJORITY OF WOMEN 944 00:37:06,732 --> 00:37:08,167 STOPPED OR DECREASED DRINKING 945 00:37:08,167 --> 00:37:09,268 ALCOHOL AFTER PREGNANCY 946 00:37:09,268 --> 00:37:09,735 AWARENESS. 947 00:37:09,735 --> 00:37:11,571 WHEN THEY FOUND OUT THEY WERE 948 00:37:11,571 --> 00:37:12,872 PREGNANT THEY FOUND OUT THEY 949 00:37:12,872 --> 00:37:15,174 STOPPED DRINKING BUT DIDN'T HAVE 950 00:37:15,174 --> 00:37:18,477 UNTIL 5.5 TO 6 WEEKS INTO THE 951 00:37:18,477 --> 00:37:19,245 PREGNANCY, SUGGESTS PROMOTING 952 00:37:19,245 --> 00:37:20,813 EARLY PREGNANCY AWARENESS COULD 953 00:37:20,813 --> 00:37:27,787 BE MORE EFFECTIVE THAN PROMOTING 954 00:37:27,787 --> 00:37:30,756 ABSTINENCE, THE FORMER RESULTS 955 00:37:30,756 --> 00:37:33,125 IN REDUCTION OF ALCOHOL 956 00:37:33,125 --> 00:37:33,426 CONSUMPTION. 957 00:37:33,426 --> 00:37:37,096 THIS IS SOMETHING THAT IS 958 00:37:37,096 --> 00:37:40,633 EXCITING, THIS IS CALLED THE 959 00:37:40,633 --> 00:37:42,001 OURA RING, I DON'T KNOW HOW MANY 960 00:37:42,001 --> 00:37:42,668 ARE FAMILIAR. 961 00:37:42,668 --> 00:37:44,637 YOU SEE IT ON THE INDEX FINGER 962 00:37:44,637 --> 00:37:46,973 USED TO MONITOR YOUR SLEEP, 963 00:37:46,973 --> 00:37:49,141 HEART RATE, ENERGY LEVEL, AND 964 00:37:49,141 --> 00:37:53,546 NOW TO DOCUMENT THE TIME OF 965 00:37:53,546 --> 00:37:54,413 CONCEPTION. 966 00:37:54,413 --> 00:37:56,349 PRELIMINARY DATA REPORTED FROM 967 00:37:56,349 --> 00:37:57,783 30 PREGNANCIES OF CONTINUOUS 968 00:37:57,783 --> 00:37:59,085 BODY TEMPERATURES TAKEN ONCE 969 00:37:59,085 --> 00:38:00,519 EVERY MINUTE, 24 HOURS A DAY, 970 00:38:00,519 --> 00:38:02,822 RECORDED FROM ONE OF THESE OURA 971 00:38:02,822 --> 00:38:05,157 RINGS FOR PASSIVE PREGNANCY 972 00:38:05,157 --> 00:38:05,891 DETECTION, AS TEMPERATURE DATA 973 00:38:05,891 --> 00:38:08,361 ABLE TO SPOT A UNIQUE PATTERN OF 974 00:38:08,361 --> 00:38:10,062 TEMPERATURE INCREASE AROUND THE 975 00:38:10,062 --> 00:38:12,231 TIME OF CONCEPTION THAT IS 976 00:38:12,231 --> 00:38:14,200 CONSISTENT WITH KNOWN RISES IN 977 00:38:14,200 --> 00:38:15,601 PROGESTERONE IN EARLY PREGNANCY 978 00:38:15,601 --> 00:38:20,006 AND IS GREATER THAN THAT SEEN 979 00:38:20,006 --> 00:38:21,841 DURING THE LUTEAL PHASE OF 980 00:38:21,841 --> 00:38:23,175 MENSTRUAL CYCLE. 981 00:38:23,175 --> 00:38:26,012 ALL 30 PREGNANCIES SHOWED CLEAR 982 00:38:26,012 --> 00:38:27,780 TEMPERATURE INCREASE FOLLOWING 983 00:38:27,780 --> 00:38:28,414 SELF-REPORTED CONCEPTION 984 00:38:28,414 --> 00:38:30,716 IDENTIFIABLY HIGHER THAN 985 00:38:30,716 --> 00:38:33,452 INCREASE THAT TYPICALLY OCCURRED 986 00:38:33,452 --> 00:38:35,321 DURING LUTEAL PHASE. 987 00:38:35,321 --> 00:38:38,824 AS NIGHT TIME TEMPERATURE DATA 988 00:38:38,824 --> 00:38:40,126 HELPED IDENTIFY PREGNANCY EARLY, 989 00:38:40,126 --> 00:38:42,862 5.5 DAYS AFTER CONCEPTION, THIS 990 00:38:42,862 --> 00:38:44,297 WAS 9 DAYS BEFORE THESE 991 00:38:44,297 --> 00:38:45,831 INDIVIDUALS RECEIVED A POSITIVE 992 00:38:45,831 --> 00:38:48,434 AT-HOME TEST, FIVE WEEKS EARLIER 993 00:38:48,434 --> 00:38:49,335 THAN MOST WOMEN RECOGNIZED THEY 994 00:38:49,335 --> 00:38:51,304 ARE PREGNANT. 995 00:38:51,304 --> 00:38:53,706 I THINK DOING THIS AND PURSUING 996 00:38:53,706 --> 00:38:55,041 THIS APPROACH WOULD BE 997 00:38:55,041 --> 00:38:55,441 INCREDIBLE. 998 00:38:55,441 --> 00:38:57,977 I'LL SAY A WORD ABOUT 999 00:38:57,977 --> 00:38:58,477 INTERVENTION. 1000 00:38:58,477 --> 00:39:01,814 I'M GOING TO GO QUICKLY. 1001 00:39:01,814 --> 00:39:05,885 YOU KNOW, WE GET A REALLY 1002 00:39:05,885 --> 00:39:07,053 APPROPRIATELY SO, WE REALLY RUN 1003 00:39:07,053 --> 00:39:09,955 INTO A LOT OF PROBLEMS AND 1004 00:39:09,955 --> 00:39:11,857 CERTAINLY I DO IN TERMS OF THE 1005 00:39:11,857 --> 00:39:14,060 FACT THAT I WILL TALK ABOUT THIS 1006 00:39:14,060 --> 00:39:15,361 DISORDER AND THEN PEOPLE WILL 1007 00:39:15,361 --> 00:39:16,896 SAY, WELL, WHAT KIND OF 1008 00:39:16,896 --> 00:39:19,432 INTERVENTIONS DO YOU HAVE, WHAT 1009 00:39:19,432 --> 00:39:21,667 CAN BE DONE AS FAR AS HELPING 1010 00:39:21,667 --> 00:39:22,535 THIS DISORDER? 1011 00:39:22,535 --> 00:39:25,237 IT'S GREAT TO IDENTIFY THESE 1012 00:39:25,237 --> 00:39:27,139 KIDS BUT THEN WHAT? 1013 00:39:27,139 --> 00:39:28,741 SO, WHAT I WANT TO SAY IS 1014 00:39:28,741 --> 00:39:29,508 THERE'S SOME DARN GOOD 1015 00:39:29,508 --> 00:39:31,577 INTERVENTIONS THAT ARE OUT THERE 1016 00:39:31,577 --> 00:39:34,113 RIGHT NOW. 1017 00:39:34,113 --> 00:39:35,648 AND INTERVENTIONS, DOING 1018 00:39:35,648 --> 00:39:36,215 INTERVENTIONS AND DEVELOPING 1019 00:39:36,215 --> 00:39:37,516 INTERVENTIONS I THINK IS A HUGE 1020 00:39:37,516 --> 00:39:41,020 PART OF WHAT'S GOING ON RIGHT 1021 00:39:41,020 --> 00:39:41,220 NOW. 1022 00:39:41,220 --> 00:39:46,359 SO, THIS IS -- I'M GOING TO 1023 00:39:46,359 --> 00:39:46,959 SUMMARIZE. 1024 00:39:46,959 --> 00:39:48,894 THESE ARE -- THIS PROGRAM 1025 00:39:48,894 --> 00:39:50,329 FAMILIES MOVING FORWARD 1026 00:39:50,329 --> 00:39:53,733 DEVELOPED BY HEATHER CARMICHAEL 1027 00:39:53,733 --> 00:39:55,267 OLSON, THIS APPROACH IS 1028 00:39:55,267 --> 00:39:56,569 EVIDENCE-BASED INTERVENTION TO 1029 00:39:56,569 --> 00:39:58,537 HELP FAMILIES RAISING CHILDREN 1030 00:39:58,537 --> 00:39:59,505 AFFECTED BY PRENATAL ALCOHOL 1031 00:39:59,505 --> 00:40:02,608 EXPOSURE WITH OR WITHOUT FETAL 1032 00:40:02,608 --> 00:40:04,643 ALCOHOL SPECTRUM DISORDER FASD 1033 00:40:04,643 --> 00:40:04,910 DIAGNOSIS. 1034 00:40:04,910 --> 00:40:06,879 AND I'M NOT -- PROBABLY MOST OF 1035 00:40:06,879 --> 00:40:08,714 YOU HEARD ABOUT HEATHER AND 1036 00:40:08,714 --> 00:40:10,816 SHE'S DOING A PHENOMENAL JOB AND 1037 00:40:10,816 --> 00:40:12,985 DID A PHENOMENAL JOB IN THIS 1038 00:40:12,985 --> 00:40:14,320 PROGRAM, REALLY FABULOUS. 1039 00:40:14,320 --> 00:40:18,791 THIS IS A PROGRAM CALLED MATH 1040 00:40:18,791 --> 00:40:19,892 INTERACTIVE LEARNING EXPERIENCE 1041 00:40:19,892 --> 00:40:22,294 BY CLAIRE COALS AND JULIE KABLE 1042 00:40:22,294 --> 00:40:24,897 AT EMORY, DESIGNED TO IMPROVE 1043 00:40:24,897 --> 00:40:26,432 THE CHILD'S MATHEMATICAL 1044 00:40:26,432 --> 00:40:27,333 KNOWLEDGE AND SKILL, CHILDREN 1045 00:40:27,333 --> 00:40:31,070 COMPLETE SIX WEEKS OF ONE-TO-ONE 1046 00:40:31,070 --> 00:40:32,271 TUTORING, USING SPECIFICALLY 1047 00:40:32,271 --> 00:40:34,673 ADAPTIVE MATERIALS, AND PARENTS 1048 00:40:34,673 --> 00:40:36,075 RECEIVE TRAINING ON BEHAVIORAL 1049 00:40:36,075 --> 00:40:37,843 REGULATION TECHNIQUES TO 1050 00:40:37,843 --> 00:40:38,944 OPTIMIZE THE CHILD'S READINESS, 1051 00:40:38,944 --> 00:40:42,214 BOTH OF THOSE PROGRAMS HAVE BEEN 1052 00:40:42,214 --> 00:40:42,848 VALIDATED. 1053 00:40:42,848 --> 00:40:50,423 THE THIRD IS A PROGRAM THAT ANDY 1054 00:40:50,423 --> 00:40:53,058 TORZOGE TOP LEFT DEVELOPED, 1055 00:40:53,058 --> 00:40:54,059 ANIMAL ASSISTED THERAPY, 1056 00:40:54,059 --> 00:40:55,494 SOCIALIZATION WITH ANIMALS WHICH 1057 00:40:55,494 --> 00:40:57,129 HELPED INDIVIDUALS STRUGGLING 1058 00:40:57,129 --> 00:40:59,098 WITH INTERACTING WITH OTHERS, 1059 00:40:59,098 --> 00:40:59,965 SPONTANEOUS SOCIAL SITUATIONS, 1060 00:40:59,965 --> 00:41:01,734 DUE TO ANXIETY WHERE OTHER 1061 00:41:01,734 --> 00:41:03,903 ISSUES, AND I CAN TELL YOU SHE 1062 00:41:03,903 --> 00:41:07,273 DOES MAGIC WITH KIDS WITH THIS 1063 00:41:07,273 --> 00:41:09,575 DISORDER IN TERMS OF LITTLE 1064 00:41:09,575 --> 00:41:11,010 ANIMALS, THIS IS A MINIATURE 1065 00:41:11,010 --> 00:41:14,113 HORSE, YOU SEE A BABY RABBIT ON 1066 00:41:14,113 --> 00:41:14,747 THE BOTTOM. 1067 00:41:14,747 --> 00:41:19,685 I CAN'T BELIEVE WHAT SHE CAN DO 1068 00:41:19,685 --> 00:41:22,755 WITH THESE KIDS. 1069 00:41:22,755 --> 00:41:23,856 LAST SLIDE, A CONTROVERSIAL 1070 00:41:23,856 --> 00:41:24,757 ISSUE WITHOUT QUESTION. 1071 00:41:24,757 --> 00:41:28,861 I GIVE A LOT OF TALKS IN 1072 00:41:28,861 --> 00:41:30,529 SOUTHERN CALIFORNIA ABOUT THIS 1073 00:41:30,529 --> 00:41:30,796 DISORDER. 1074 00:41:30,796 --> 00:41:32,498 AND I TELL PEOPLE THAT THIS 1075 00:41:32,498 --> 00:41:34,433 DISORDER IS MORE COMMON THAN 1076 00:41:34,433 --> 00:41:35,868 AUTISM SPECTRUM DISORDER. 1077 00:41:35,868 --> 00:41:37,403 I TELL THEM THAT THERE'S NOT A 1078 00:41:37,403 --> 00:41:39,805 SAFE LEVEL OF DRINKING DURING 1079 00:41:39,805 --> 00:41:40,072 PREGNANCY. 1080 00:41:40,072 --> 00:41:41,674 I TELL THEM THAT ALCOHOL IS THE 1081 00:41:41,674 --> 00:41:44,176 DRUG OF ABUSE THAT HAS THE 1082 00:41:44,176 --> 00:41:46,579 GREATEST IMPACT ON FETAL 1083 00:41:46,579 --> 00:41:46,912 DEVELOPMENT. 1084 00:41:46,912 --> 00:41:49,014 WHICH BLOWS THEM AWAY WHEN I 1085 00:41:49,014 --> 00:41:52,718 TELL THEM, NO, IT'S FAR MORE 1086 00:41:52,718 --> 00:41:55,688 DANGER TO THE DEVELOPING FETUS 1087 00:41:55,688 --> 00:41:56,689 THAN MARIJUANA AND 1088 00:41:56,689 --> 00:41:57,890 METHAMPHETAMINE AND COCAINE AND 1089 00:41:57,890 --> 00:41:58,958 ALL THE REST OF THEM. 1090 00:41:58,958 --> 00:42:01,827 YOU CAN WRAP THEM ALL IN A BAG 1091 00:42:01,827 --> 00:42:03,462 AND NOT -- THEY DON'T HOLD A 1092 00:42:03,462 --> 00:42:05,097 CANDLE TO ALCOHOL IN TERMS OF 1093 00:42:05,097 --> 00:42:10,336 ITS EFFECTS ON THE UNBORN BABY. 1094 00:42:10,336 --> 00:42:12,438 PREVALENCE IS BETWEEN 1.1 AND 5% 1095 00:42:12,438 --> 00:42:13,305 OF SCHOOL AGE CHILDREN ACROSS 1096 00:42:13,305 --> 00:42:16,475 THE U.S. SO IN SOME AREAS IT'S 1 1097 00:42:16,475 --> 00:42:19,945 OUT OF 20 KIDS, IN SAN DIEGO 1098 00:42:19,945 --> 00:42:22,915 COUNTY FIRST AND SECOND GRADE 1099 00:42:22,915 --> 00:42:25,751 STUDENTS, THE PREVALENCE IS 1100 00:42:25,751 --> 00:42:27,620 2.3%, THAT'S 1 OUT OF EVERY 44 1101 00:42:27,620 --> 00:42:29,555 KIDS. 1102 00:42:29,555 --> 00:42:31,790 AND I WILL TELL YOU AS I'M ABOUT 1103 00:42:31,790 --> 00:42:33,425 MIDWAY THROUGH THAT LIST, I SEE 1104 00:42:33,425 --> 00:42:36,462 THEIR EYES START TO ROLL BACK. 1105 00:42:36,462 --> 00:42:37,696 THEY ARE BORED SILLY BY WHAT I'M 1106 00:42:37,696 --> 00:42:38,464 TELLING THEM. 1107 00:42:38,464 --> 00:42:46,639 HOWEVER WHEN I SAY TO THEM 24% 1108 00:42:46,639 --> 00:42:53,546 OF THE ADOLESCENTS INCARCERATED 1109 00:42:53,546 --> 00:42:57,816 AT THE JUVENILE HALL HAVE BEEN 1110 00:42:57,816 --> 00:42:59,351 EXPOSED, I GET THEIR ATTENTION, 1111 00:42:59,351 --> 00:43:01,220 THE CRIMINAL JUSTICE SYSTEM IS 1112 00:43:01,220 --> 00:43:02,855 THE MOST EFFECTIVE WAY TO MAKE 1113 00:43:02,855 --> 00:43:04,123 PEOPLE AWARE OF THIS DISORDER. 1114 00:43:04,123 --> 00:43:06,792 THANK YOU. 1115 00:43:06,792 --> 00:43:09,628 >> THANK YOU VERY MUCH. 1116 00:43:09,628 --> 00:43:12,164 WE'LL TAKE QUESTIONS AFTER ALL 1117 00:43:12,164 --> 00:43:19,705 PRESENTATIONS WITH PANEL. 1118 00:43:19,705 --> 00:43:22,841 NEXT SPEAKER I WILL INTRODUCE. 1119 00:43:22,841 --> 00:43:23,542 >> THAT WAS FANTASTIC. 1120 00:43:23,542 --> 00:43:25,177 NOW WHAT YOU'RE DOING TO MAKE 1121 00:43:25,177 --> 00:43:27,680 LIFE BETTER AND THE HISTORY. 1122 00:43:27,680 --> 00:43:30,416 NEXT SPEAKER IS KATHY MITCHELL, 1123 00:43:30,416 --> 00:43:33,919 SENIOR VICE PRESIDENT OF FASD 1124 00:43:33,919 --> 00:43:35,354 PREVENTION AND RECOVERY 1125 00:43:35,354 --> 00:43:36,789 SERVICES, FASD UNITED. 1126 00:43:36,789 --> 00:43:44,096 SHE SERVED AS VICE PRESIDENT AND 1127 00:43:44,096 --> 00:43:47,199 SPOKESPERSON FOR FASD UNITED, 1128 00:43:47,199 --> 00:43:49,168 FORMERLY NOFAS FOR 24 HOURS, 1129 00:43:49,168 --> 00:43:51,437 MASTER OF HUMAN SERVICES DEGREE, 1130 00:43:51,437 --> 00:43:53,739 LICENSED CLINICAL ALCOHOL AND 1131 00:43:53,739 --> 00:43:55,808 DRUG COUNSELOR, SHE SERVED AS 1132 00:43:55,808 --> 00:43:57,109 PRINCIPAL INVESTIGATOR AND 1133 00:43:57,109 --> 00:43:59,845 PROJECT OFFICER FOR GOVERNMENT 1134 00:43:59,845 --> 00:44:02,514 PROJECTS THAT AIMED TO PREVENT 1135 00:44:02,514 --> 00:44:03,749 FASD, REDUCE STIGMA IN FAMILIES 1136 00:44:03,749 --> 00:44:06,452 AND INDIVIDUALS LIVING WITH 1137 00:44:06,452 --> 00:44:07,119 FASD. 1138 00:44:07,119 --> 00:44:08,854 SHE'S TAUGHT AT GEORGETOWN AND 1139 00:44:08,854 --> 00:44:11,290 NORTHWESTERN MEDICAL SCHOOLS, 1140 00:44:11,290 --> 00:44:12,157 SPECIAL COMMITTEE OF THE WORLD 1141 00:44:12,157 --> 00:44:13,559 HEALTH ORGANIZATION DEVELOPING 1142 00:44:13,559 --> 00:44:15,094 GUIDELINES FOR THE 1143 00:44:15,094 --> 00:44:16,528 IDENTIFICATION AND MANAGEMENT OF 1144 00:44:16,528 --> 00:44:19,598 SUBSTANCE USE DISORDERS IN 1145 00:44:19,598 --> 00:44:20,032 PREGNANCY. 1146 00:44:20,032 --> 00:44:23,535 IN 2004 FOUNDED INTERNATIONAL 1147 00:44:23,535 --> 00:44:24,370 BIRTH MOTHER MENTORSHIP PROGRAM, 1148 00:44:24,370 --> 00:44:25,938 CIRCLE OF HOPE. 1149 00:44:25,938 --> 00:44:29,108 IN 2020 FOUNDED RECOVERY MOTHERS 1150 00:44:29,108 --> 00:44:31,877 ANONYMOUS, A NOTED INVITED SPEAK 1151 00:44:31,877 --> 00:44:34,279 OTHER FETAL ALCOHOL SPECTRUM 1152 00:44:34,279 --> 00:44:35,347 DISORDERS, WOMEN AND ADDICTION, 1153 00:44:35,347 --> 00:44:37,883 STIGMA AND HAS PRESENTED FOR 1154 00:44:37,883 --> 00:44:41,053 OVER THREE DECADES NATIONALLY 1155 00:44:41,053 --> 00:44:41,387 AND GLOBALLY. 1156 00:44:41,387 --> 00:44:44,123 IN 1990 TESTIFIED TO CONGRESS AT 1157 00:44:44,123 --> 00:44:54,033 THE FIRST HEARING ON FAS, FAE, 1158 00:44:54,033 --> 00:45:00,539 IN 1992 AND 1994 TESTIFIED, 1159 00:45:00,539 --> 00:45:03,509 RESULTING IN WARNING LABELS, 1160 00:45:03,509 --> 00:45:06,345 CO-AUTHORED OR AUTHORED 23 1161 00:45:06,345 --> 00:45:08,080 PUBLISHED PAPERS, CONTINUES TO 1162 00:45:08,080 --> 00:45:10,616 SPEAK AT CONFERENCES AND PROVIDE 1163 00:45:10,616 --> 00:45:12,584 TRAINING AND SUPPORTS CIRCLE OF 1164 00:45:12,584 --> 00:45:14,420 HOPE SPEAKERS BUREAU, PARTNERS 1165 00:45:14,420 --> 00:45:17,289 WITH AMERICAN COLLEGE OF 1166 00:45:17,289 --> 00:45:18,157 OBSTETRICIANS AND GYNECOLOGISTS 1167 00:45:18,157 --> 00:45:21,026 IN SPEAKING AT GRAND ROUNDS AT 1168 00:45:21,026 --> 00:45:21,894 MEDICAL FACILITIES ACROSS THE 1169 00:45:21,894 --> 00:45:23,962 U.S. WHICH GOES A LONG WAY, 1170 00:45:23,962 --> 00:45:27,066 AGAIN, IN RAISING THE AWARENESS 1171 00:45:27,066 --> 00:45:29,201 OF THE PREVALENCE AND SEVERITY 1172 00:45:29,201 --> 00:45:31,170 OF THIS DISORDER. 1173 00:45:31,170 --> 00:45:32,738 SO, WELCOME, AND THE PODIUM IS 1174 00:45:32,738 --> 00:45:40,612 YOURS. 1175 00:45:40,612 --> 00:45:43,549 >> WHAT AN HONOR TO BE HERE AND 1176 00:45:43,549 --> 00:45:47,419 FOLLOW KEN JOHNS. -- JONES. 1177 00:45:47,419 --> 00:45:48,821 WE ALL LOVE KEN. 1178 00:45:48,821 --> 00:45:50,222 THAT WAS AMAZING. 1179 00:45:50,222 --> 00:45:55,594 WHAT RIDE IT'S BEEN, HUH ? 1180 00:45:55,594 --> 00:45:58,664 I'M GOING TO GO THROUGH IDEAS 1181 00:45:58,664 --> 00:46:01,967 AND STORIES, AND, YOU KNOW, I'VE 1182 00:46:01,967 --> 00:46:04,036 BEEN ALSO WORKING IN THIS ISSUE 1183 00:46:04,036 --> 00:46:05,237 FOR A LONG TIME. 1184 00:46:05,237 --> 00:46:06,505 SO IT'S LIKE THEY BROUGHT ALL 1185 00:46:06,505 --> 00:46:09,174 THE OLD GUYS OUT OF THE CLOSET 1186 00:46:09,174 --> 00:46:12,144 TODAY, I GUESS, KEN, I'LL SPEAK 1187 00:46:12,144 --> 00:46:14,313 FOR MYSELF. 1188 00:46:14,313 --> 00:46:16,415 BUT ANYWAY, WHAT A RIDE IT'S 1189 00:46:16,415 --> 00:46:16,615 BEEN. 1190 00:46:16,615 --> 00:46:18,250 I'LL SAY THIS. 1191 00:46:18,250 --> 00:46:21,220 WE HAVE COME A LONG WAY, BUT OH 1192 00:46:21,220 --> 00:46:24,356 MY GOSH, WE CAN DO SO MUCH MORE. 1193 00:46:24,356 --> 00:46:28,093 WE CAN DO SO MUCH MORE. 1194 00:46:28,093 --> 00:46:31,029 WE TALK ABOUT THIS, DR. JONES 1195 00:46:31,029 --> 00:46:36,902 AND I, JUST HOW MANY PEOPLE 1196 00:46:36,902 --> 00:46:37,770 JUST -- JUST THE DISCONNECT. 1197 00:46:37,770 --> 00:46:39,538 WE COME TO GREAT MEETINGS, AND 1198 00:46:39,538 --> 00:46:42,174 THEN PEOPLE MOVE ON WITH THEIR 1199 00:46:42,174 --> 00:46:45,577 LIVES. 1200 00:46:45,577 --> 00:46:47,579 AND, YOU KNOW, THERE'S THAT 1201 00:46:47,579 --> 00:46:49,414 DISCONNECT, FORGETTING ABOUT IT. 1202 00:46:49,414 --> 00:46:52,584 I DON'T FORGET ABOUT IT, BUT I 1203 00:46:52,584 --> 00:46:59,057 AM A BIRTH MOTHER, AND LIVE WITH 1204 00:46:59,057 --> 00:47:00,659 A DAUGHTER, WHOSE LIFE IS 1205 00:47:00,659 --> 00:47:03,862 AFFECTED EVERY SINGLE DAY BY THE 1206 00:47:03,862 --> 00:47:09,201 FACT THAT I DRANK DURING 1207 00:47:09,201 --> 00:47:09,701 PREGNANCY. 1208 00:47:09,701 --> 00:47:12,070 I LOVE THIS QUOTE BY MAYA 1209 00:47:12,070 --> 00:47:12,471 ANGELOU. 1210 00:47:12,471 --> 00:47:14,239 WORDS ARE THINGS, THEY GOT ON 1211 00:47:14,239 --> 00:47:15,440 THE WALLS, GET IN YOUR 1212 00:47:15,440 --> 00:47:18,177 WALLPAPER, IN YOUR RUGS AND 1213 00:47:18,177 --> 00:47:24,983 UPHOLSTERY AND CLOTHES, AND 1214 00:47:24,983 --> 00:47:26,285 FINALLY INTO YOU. 1215 00:47:26,285 --> 00:47:27,719 THAT'S EXACTLY THE EXPERIENCE I 1216 00:47:27,719 --> 00:47:29,021 FOUND WITH WOMEN WITH THIS LIVED 1217 00:47:29,021 --> 00:47:30,889 EXPERIENCE AND I'VE NEVER MET, 1218 00:47:30,889 --> 00:47:35,160 AND I'VE BEEN AT THIS NOW, IN 1219 00:47:35,160 --> 00:47:37,663 LONG-TERM RECOVERY, FROM ALCOHOL 1220 00:47:37,663 --> 00:47:38,797 AND SUBSTANCE USE DISORDER, 1221 00:47:38,797 --> 00:47:41,700 COMING UP ON 40 YEARS. 1222 00:47:41,700 --> 00:47:43,569 I'VE KNOWN THOUSANDS OF WOMEN 1223 00:47:43,569 --> 00:47:45,737 WITH THIS LIVED EXPERIENCE, AND 1224 00:47:45,737 --> 00:47:49,274 I HAVE NEVER MET ONE WOMAN WHO 1225 00:47:49,274 --> 00:47:51,877 PURPOSELY DAMAGED HER OWN UNBORN 1226 00:47:51,877 --> 00:47:52,244 BABY. 1227 00:47:52,244 --> 00:47:55,714 THERE'S MANY REASONS FOR THIS. 1228 00:47:55,714 --> 00:47:58,116 THE PRIMARY REASON FROM MY 1229 00:47:58,116 --> 00:47:59,985 EXPERIENCE IS THAT WE'RE NOT 1230 00:47:59,985 --> 00:48:02,855 GOOD AT ASSESSING FOR SUBSTANCE 1231 00:48:02,855 --> 00:48:04,289 USE DISORDERS, INTERVENING, AND 1232 00:48:04,289 --> 00:48:05,457 GETTING THEM INTO TREATMENT 1233 00:48:05,457 --> 00:48:07,559 BECAUSE GUESS WHAT, TREATMENT 1234 00:48:07,559 --> 00:48:08,360 WORKS. 1235 00:48:08,360 --> 00:48:10,996 BECAUSE THOSE ARE THE MOST 1236 00:48:10,996 --> 00:48:12,197 AT-RISK PEOPLE, NOT TO SAY 1237 00:48:12,197 --> 00:48:13,832 SOMEBODY WHO DOESN'T HAVE A 1238 00:48:13,832 --> 00:48:16,935 SUBSTANCE USE DISORDER MIGHT 1239 00:48:16,935 --> 00:48:19,104 HAVE AN UNFORTUNATE CIRCUMSTANCE 1240 00:48:19,104 --> 00:48:20,539 OF DRINKING AT THE WRONG TIME 1241 00:48:20,539 --> 00:48:22,374 BUT FOR THE MAJORITY PEOPLE I'VE 1242 00:48:22,374 --> 00:48:27,312 MET THAT HAVE A CHILD THAT HAS 1243 00:48:27,312 --> 00:48:28,847 MEASURABLE EFFECTS, THEY ARE 1244 00:48:28,847 --> 00:48:32,017 PEOPLE WITH THE LIVED EXPERIENCE 1245 00:48:32,017 --> 00:48:34,219 OF HAVING AN ALCOHOL OR 1246 00:48:34,219 --> 00:48:36,388 SUBSTANCE USE DISORDER. 1247 00:48:36,388 --> 00:48:37,723 THE STIGMA THING IS A BIG DEAL. 1248 00:48:37,723 --> 00:48:41,460 I WAS ON THE FIRST FAS, FAE WE 1249 00:48:41,460 --> 00:48:43,495 CALLED IT BACK THEN. 1250 00:48:43,495 --> 00:48:48,433 FETAL ALCOHOL EFFECTS, TASK 1251 00:48:48,433 --> 00:48:48,634 FORCE. 1252 00:48:48,634 --> 00:48:49,635 DONNA SHALALA APPOINTED ME TO 1253 00:48:49,635 --> 00:48:51,303 THE TASK FORCE. 1254 00:48:51,303 --> 00:49:01,213 I GOT TO TESTIFY AT A COUPLE 1255 00:49:01,213 --> 00:49:01,446 HEARINGS 1256 00:49:01,446 --> 00:49:03,081 THE FIRST ON FETAL ALCOHOL 1257 00:49:03,081 --> 00:49:04,082 SYNDROME, SECOND ON WARNING 1258 00:49:04,082 --> 00:49:04,316 LABELS. 1259 00:49:04,316 --> 00:49:09,221 I GOT A CHANCE TO TELL MY STORY, 1260 00:49:09,221 --> 00:49:11,089 TO EFFECT CHANGE. 1261 00:49:11,089 --> 00:49:12,624 IT'S JUST UNBELIEVABLE FOR ME 1262 00:49:12,624 --> 00:49:13,725 HAVING THAT LIVED EXPERIENCE TO 1263 00:49:13,725 --> 00:49:14,793 FEEL LIKE, WELL, AT LEAST 1264 00:49:14,793 --> 00:49:17,863 SOMETHING GOOD CAME OUT OF IT. 1265 00:49:17,863 --> 00:49:19,064 DURING THOSE EARLY DAYS, THE 1266 00:49:19,064 --> 00:49:21,133 FIRST TIME I EVER MET DR. KEN 1267 00:49:21,133 --> 00:49:22,567 JONES, I SAID, YOU KNOW, WE 1268 00:49:22,567 --> 00:49:23,869 REALLY NEED TO CHANGE THE NAME 1269 00:49:23,869 --> 00:49:24,303 OF THAT. 1270 00:49:24,303 --> 00:49:26,605 I THINK YOU OUGHT TO CHANGE IT 1271 00:49:26,605 --> 00:49:31,343 TO SMITH AND JONES SYNDROME. 1272 00:49:31,343 --> 00:49:32,010 REMEMBER? 1273 00:49:32,010 --> 00:49:32,511 NO, NO, NO. 1274 00:49:32,511 --> 00:49:34,046 I SAID YEAH, YEAH. 1275 00:49:34,046 --> 00:49:36,581 BECAUSE GUESS WHAT, IT'S REALLY 1276 00:49:36,581 --> 00:49:39,184 HARD TO WALK AROUND THE GROCERY 1277 00:49:39,184 --> 00:49:40,385 STORE AND TELL PEOPLE THAT YOU 1278 00:49:40,385 --> 00:49:42,921 HAVE A CHILD WITH FETAL ALCOHOL 1279 00:49:42,921 --> 00:49:43,555 SYNDROME. 1280 00:49:43,555 --> 00:49:47,059 SO PEOPLE WILL SAY, OH, YOU HAVE 1281 00:49:47,059 --> 00:49:49,127 A DISABLED DAUGHTER? 1282 00:49:49,127 --> 00:49:49,294 OH! 1283 00:49:49,294 --> 00:49:51,897 YEAH, WHAT DOES SHE HAVE? 1284 00:49:51,897 --> 00:49:55,901 AND, YOU KNOW, I'LL SAY, WELL, 1285 00:49:55,901 --> 00:49:58,003 SHE HAS FETAL ALCOHOL SYNDROME. 1286 00:49:58,003 --> 00:49:59,638 BLESS YOUR HEART, YOU ADOPTED 1287 00:49:59,638 --> 00:50:00,505 HER? 1288 00:50:00,505 --> 00:50:02,374 NO, NO, NO, I DRANK WHEN I WAS 1289 00:50:02,374 --> 00:50:02,874 PREGNANT. 1290 00:50:02,874 --> 00:50:03,909 YOU GET THE POINT. 1291 00:50:03,909 --> 00:50:05,210 WHEN PEOPLE KNOW YOU'RE THE 1292 00:50:05,210 --> 00:50:06,445 BIRTH MOTHER, YOU DRANK, THIS 1293 00:50:06,445 --> 00:50:09,147 GOES ON, BY THE WAY, MY DAUGHTER 1294 00:50:09,147 --> 00:50:12,751 IS NOW 51, LIVES IN A GROUP 1295 00:50:12,751 --> 00:50:14,953 HOME, SALISBURY, MARYLAND. 1296 00:50:14,953 --> 00:50:16,688 AND WHEN THE PROVIDERS FIND OUT 1297 00:50:16,688 --> 00:50:18,123 SHE HAS FETAL ALCOHOL SYNDROME, 1298 00:50:18,123 --> 00:50:20,325 AND THAT I'M THE BIRTH MOTHER, 1299 00:50:20,325 --> 00:50:21,626 OH BOY, THE GOSSIP STARTS. 1300 00:50:21,626 --> 00:50:25,130 AND THEY START TO TREAT YOU AS 1301 00:50:25,130 --> 00:50:26,898 IF YOU ARE MUCH LESS THAN THEY 1302 00:50:26,898 --> 00:50:27,065 ARE. 1303 00:50:27,065 --> 00:50:28,200 MUCH LESS. 1304 00:50:28,200 --> 00:50:29,501 THAT YOU'RE A TERRIBLE MOTHER, A 1305 00:50:29,501 --> 00:50:30,736 TERRIBLE HUMAN BEING. 1306 00:50:30,736 --> 00:50:32,471 SO THAT'S THE EXPERIENCE. 1307 00:50:32,471 --> 00:50:34,539 IT'S A REALLY TOUGH THING TO 1308 00:50:34,539 --> 00:50:35,874 CARRY AROUND. 1309 00:50:35,874 --> 00:50:40,045 SO, THE STIGMA ISN'T BECAUSE WE 1310 00:50:40,045 --> 00:50:41,213 MIGHT HURT SOMEBODY'S FEELINGS. 1311 00:50:41,213 --> 00:50:44,082 I BELIEVE IT'S THE REASON WHY 1312 00:50:44,082 --> 00:50:46,785 WE'VE GOTTEN FAR BUT WE HAVEN'T 1313 00:50:46,785 --> 00:50:48,220 GOTTEN WHERE WE SHOULD BE, 1314 00:50:48,220 --> 00:50:50,789 BECAUSE THE STIGMA IS SO 1315 00:50:50,789 --> 00:50:53,158 PROFOUND, DOCTORS DON'T WANT TO 1316 00:50:53,158 --> 00:50:57,329 DIAGNOSE IT, I'VE KNOWN TWO 1317 00:50:57,329 --> 00:50:58,130 REALLY AMAZING PEDIATRICIANS, 1318 00:50:58,130 --> 00:51:01,533 ONE IN A TRIBAL COMMUNITY, ONE 1319 00:51:01,533 --> 00:51:03,001 IN WASHINGTON, D.C., AND SHE IT 1320 00:51:03,001 --> 00:51:04,970 A MOBILE VAN AND WOULD GO TO 1321 00:51:04,970 --> 00:51:06,605 HIGH RISK AREAS IN WASHINGTON, 1322 00:51:06,605 --> 00:51:08,573 D.C., AND BOTH TOLD ME, POINT 1323 00:51:08,573 --> 00:51:10,342 BLANK, I WILL NEVER DIAGNOSE A 1324 00:51:10,342 --> 00:51:11,877 CHILD WITH THAT. 1325 00:51:11,877 --> 00:51:12,944 I'M LIKE, WHY? 1326 00:51:12,944 --> 00:51:14,513 I DIDN'T UNDERSTAND. 1327 00:51:14,513 --> 00:51:19,151 AND THEY TOLD ME THE REASON IS 1328 00:51:19,151 --> 00:51:20,252 BECAUSE THOSE CHILDREN WOULD BE 1329 00:51:20,252 --> 00:51:21,853 TREATED LESS THAN, THEY WILL 1330 00:51:21,853 --> 00:51:23,155 THINK THEY CAN'T LEARN, BUT THE 1331 00:51:23,155 --> 00:51:25,557 FAMILIES WILL SUFFER THE 1332 00:51:25,557 --> 00:51:25,791 OUTCOME. 1333 00:51:25,791 --> 00:51:27,893 IT'S GOING TO REALLY DAMAGE THE 1334 00:51:27,893 --> 00:51:28,360 FAMILIES. 1335 00:51:28,360 --> 00:51:30,328 THAT'S A PROBLEM. 1336 00:51:30,328 --> 00:51:31,029 THAT'S A PROBLEM. 1337 00:51:31,029 --> 00:51:36,168 YOU KNOW, I WAS PART OF THE 1338 00:51:36,168 --> 00:51:39,071 EARLY DAYS AT FASD UNITED. 1339 00:51:39,071 --> 00:51:40,305 THE NATIONAL ORGANIZATION ON 1340 00:51:40,305 --> 00:51:42,908 FETAL ALCOHOL SYNDROME. 1341 00:51:42,908 --> 00:51:45,177 I WAS THERE, IN THE EARLY DAYS, 1342 00:51:45,177 --> 00:51:46,845 SOME OF THE PUBLIC HEALTH 1343 00:51:46,845 --> 00:51:48,246 MESSAGES THAT WE WOULD USE, I 1344 00:51:48,246 --> 00:51:49,581 WOULD ALWAYS CRINGE. 1345 00:51:49,581 --> 00:51:51,650 I WOULD SIT IN A LOT OF THESE 1346 00:51:51,650 --> 00:51:54,186 MEETINGS, AND IT WOULD BE LIKE I 1347 00:51:54,186 --> 00:51:55,720 WOULD FEEL LIKE LITTLE KNIVES 1348 00:51:55,720 --> 00:51:59,091 GOING INTO ME. 1349 00:51:59,091 --> 00:52:00,192 OH, YOU KNOW? 1350 00:52:00,192 --> 00:52:03,728 FAS OCCURS WHEN A PREGNANT 1351 00:52:03,728 --> 00:52:05,330 MOTHER DRINKS DURING PREGNANCY. 1352 00:52:05,330 --> 00:52:08,200 YOU KNOW, STAB ME AGAIN. 1353 00:52:08,200 --> 00:52:10,702 IT'S HARD TO HEAR WHEN YOU HAVE 1354 00:52:10,702 --> 00:52:12,137 THAT BECAUSE YOU WANT TO SAY 1355 00:52:12,137 --> 00:52:15,073 INSIDE, OH, BUT I DIDN'T KNOW! 1356 00:52:15,073 --> 00:52:16,641 MY CHILD WAS BORN BEFORE KEN'S 1357 00:52:16,641 --> 00:52:17,909 PAPER CAME OUT. 1358 00:52:17,909 --> 00:52:21,012 WE DIDN'T KNOW, AS FAR AS I 1359 00:52:21,012 --> 00:52:21,646 KNEW. 1360 00:52:21,646 --> 00:52:22,981 WINE MADE THE BABY'S BLOOD 1361 00:52:22,981 --> 00:52:25,717 BETTER, THAT'S WHAT I WAS TOLD. 1362 00:52:25,717 --> 00:52:27,252 WE DIDN'T KNOW YOU SHOULDN'T 1363 00:52:27,252 --> 00:52:29,221 DRINK ALCOHOL. 1364 00:52:29,221 --> 00:52:30,989 SO, ANYWAY, SO THE STIGMA AND 1365 00:52:30,989 --> 00:52:33,158 BIAS IS A REALLY BIG DEAL, AND 1366 00:52:33,158 --> 00:52:35,026 WE'VE COME REALLY FAR WITH THAT. 1367 00:52:35,026 --> 00:52:37,629 THANKS TO FUNDING THAT CAME OUT 1368 00:52:37,629 --> 00:52:39,397 THROUGH THE CDC, TO ADDRESS SOME 1369 00:52:39,397 --> 00:52:42,901 OF THE ISSUES AROUND STIGMA. 1370 00:52:42,901 --> 00:52:44,769 AND I HAD AN OPPORTUNITY, WE HAD 1371 00:52:44,769 --> 00:52:49,774 AN OPPORTUNITY TO WORK WITH 1372 00:52:49,774 --> 00:52:51,676 PATRICK CORRIGAN, REALLY THE 1373 00:52:51,676 --> 00:52:54,312 STIGMA GURU, AND HE DID THESE 1374 00:52:54,312 --> 00:52:56,715 LARGE STUDIES LOOKING AT HOW THE 1375 00:52:56,715 --> 00:52:59,217 GENERAL PUBLIC AND HOW 1376 00:52:59,217 --> 00:53:00,652 HEALTHCARE PROVIDERS KIND OF 1377 00:53:00,652 --> 00:53:01,920 VIEWED WOMEN WITH THIS LIVED 1378 00:53:01,920 --> 00:53:02,954 EXPERIENCE, AND FOUND IT WAS 1379 00:53:02,954 --> 00:53:04,789 JUST OFF THE CHARTS. 1380 00:53:04,789 --> 00:53:07,926 HE WAS AMAZED, I'VE NEVER SEEN 1381 00:53:07,926 --> 00:53:09,294 ANYTHING LIKE THIS, MORE BLAME 1382 00:53:09,294 --> 00:53:10,695 AND DISDAIN AND FEELING LIKE 1383 00:53:10,695 --> 00:53:13,465 THEY OUGHT TO BE, YOU KNOW, 1384 00:53:13,465 --> 00:53:14,566 LOCKED UP AND PROSECUTED FOR 1385 00:53:14,566 --> 00:53:17,936 WHAT THEY HAVE DONE, YOU KNOW, 1386 00:53:17,936 --> 00:53:21,873 WHEN THEY WERE COMPARED TO WOMEN 1387 00:53:21,873 --> 00:53:23,942 WITH CRIMINAL HISTORIES OR 1388 00:53:23,942 --> 00:53:25,277 MENTAL HEALTH HISTORIES. 1389 00:53:25,277 --> 00:53:27,245 BUT THE REAL BIG DEAL IS THAT 1390 00:53:27,245 --> 00:53:30,749 WHEN WE HAVE AN ISSUE THAT IS 1391 00:53:30,749 --> 00:53:31,950 STIGMATIZED, WHAT HAPPENS IS 1392 00:53:31,950 --> 00:53:34,252 THERE'S LESS MONEY AVAILABLE. 1393 00:53:34,252 --> 00:53:36,121 THERE'S LESS RESOURCES, IT'S AN 1394 00:53:36,121 --> 00:53:37,756 ISSUE THAT, OH, IT JUST AFFECTS 1395 00:53:37,756 --> 00:53:39,824 THOSE PEOPLE THAT WE DON'T CARE 1396 00:53:39,824 --> 00:53:40,058 ABOUT. 1397 00:53:40,058 --> 00:53:41,793 SO WE DON'T NEED TO PUT A LOT OF 1398 00:53:41,793 --> 00:53:42,027 MONEY. 1399 00:53:42,027 --> 00:53:43,461 IS THAT REALLY A THING? 1400 00:53:43,461 --> 00:53:45,197 WHERE DOES THAT HAPPEN? 1401 00:53:45,197 --> 00:53:47,265 I'VE HEARD ALL KINDS OF 1402 00:53:47,265 --> 00:53:48,466 DEROGATORY COMMENTS THAT WON'T 1403 00:53:48,466 --> 00:53:52,337 COME OUT OF MY MOUTH RIGHT NOW, 1404 00:53:52,337 --> 00:53:55,907 BUT -- SO, JUST SUCH OFFENSIVE 1405 00:53:55,907 --> 00:53:57,375 TERRIBLE LIKE IDEAS ABOUT WHO 1406 00:53:57,375 --> 00:53:59,644 THIS HAPPENS TO. 1407 00:53:59,644 --> 00:54:01,413 AND IT'S ALWAYS ROOTED IN THIS 1408 00:54:01,413 --> 00:54:03,481 BIAS AND STIGMA AND KIND OF VERY 1409 00:54:03,481 --> 00:54:05,784 CLEAR TO ME THAT, OH, THOSE ARE 1410 00:54:05,784 --> 00:54:06,785 THOSE PEOPLE. 1411 00:54:06,785 --> 00:54:07,986 THOSE ARE THOSE PEOPLE. 1412 00:54:07,986 --> 00:54:12,123 AND SO I'M GOING TO CHALLENGE 1413 00:54:12,123 --> 00:54:13,758 EACH OF YOU TODAY, YOU HAVE A 1414 00:54:13,758 --> 00:54:15,093 POSITION OF POWER. 1415 00:54:15,093 --> 00:54:16,494 YOU CAN REALLY MAKE A 1416 00:54:16,494 --> 00:54:17,162 DIFFERENCE. 1417 00:54:17,162 --> 00:54:18,363 I KNOW THERE'S PUSHBACK. 1418 00:54:18,363 --> 00:54:19,231 I KNOW. 1419 00:54:19,231 --> 00:54:21,099 I KNOW SOME OF YOU PERSONALLY 1420 00:54:21,099 --> 00:54:23,401 AND I HAVE SEEN YOU FIGHT THE 1421 00:54:23,401 --> 00:54:27,138 GOOD FIGHT, TRYING TO GET MORE 1422 00:54:27,138 --> 00:54:28,306 RESOURCES, MORE SERVICES, MORE 1423 00:54:28,306 --> 00:54:29,407 ATTENTION PAID TO THIS. 1424 00:54:29,407 --> 00:54:31,610 AND THEN YOU GET NEW PEOPLE TO 1425 00:54:31,610 --> 00:54:33,011 COME INTO YOUR AGENCY THAT DON'T 1426 00:54:33,011 --> 00:54:34,546 KNOW WHAT IT IS, AND NOW WE'VE 1427 00:54:34,546 --> 00:54:38,717 GOT TO TRIED TO INDICATE 1428 00:54:38,717 --> 00:54:40,552 A GAIN -- TO EDUCATE AGAIN. 1429 00:54:40,552 --> 00:54:40,919 KEEP PUSHING. 1430 00:54:40,919 --> 00:54:42,654 IF YOU KNOW ABOUT THIS, YOU MAY 1431 00:54:42,654 --> 00:54:45,090 BE THE ONLY PERSON WILLING TO 1432 00:54:45,090 --> 00:54:46,391 PUSH FOR CHANGE BECAUSE THIS IS 1433 00:54:46,391 --> 00:54:49,361 SOMETHING WE CAN DO SOMETHING 1434 00:54:49,361 --> 00:54:49,561 ABOUT. 1435 00:54:49,561 --> 00:54:51,663 IT IS CONTINUING TO AFFECT MORE 1436 00:54:51,663 --> 00:54:53,965 AND MORE PEOPLE, AND I THINK 1437 00:54:53,965 --> 00:54:56,901 PERSONALLY IT'S WORSE THAN IT'S 1438 00:54:56,901 --> 00:54:58,670 EVER BEEN, AND I'LL TELL YOU WHY 1439 00:54:58,670 --> 00:55:03,241 IN A FEW MOMENTS HERE, WHY I 1440 00:55:03,241 --> 00:55:04,476 THINK THAT. 1441 00:55:04,476 --> 00:55:08,513 AND, YOU KNOW, HOW WE REALLY -- 1442 00:55:08,513 --> 00:55:10,348 OOPS, SORRY. 1443 00:55:10,348 --> 00:55:13,018 I'M THE WORST WITH TECHNOLOGY. 1444 00:55:13,018 --> 00:55:16,821 BUT HOW WE DEAL WITH PEOPLE THAT 1445 00:55:16,821 --> 00:55:17,589 ARE STIGMATIZED GROUPS, THE 1446 00:55:17,589 --> 00:55:19,457 FIRST THING WE DO WHEN WE WANT 1447 00:55:19,457 --> 00:55:20,992 TO GET CONTROL, WE WANT TO GET 1448 00:55:20,992 --> 00:55:22,527 CONTROL OF THEM, WE TAKE THEIR 1449 00:55:22,527 --> 00:55:23,728 CHILDREN FROM THEM. 1450 00:55:23,728 --> 00:55:25,363 AND THAT'S THE FIRST STEP THAT 1451 00:55:25,363 --> 00:55:26,364 WE DO. 1452 00:55:26,364 --> 00:55:27,666 AND THE WAY THAT WE CONTROL 1453 00:55:27,666 --> 00:55:27,866 THEM. 1454 00:55:27,866 --> 00:55:29,768 WE BEGIN TO LOCK THEM UP AND 1455 00:55:29,768 --> 00:55:31,603 THROW THEM OUT OF SYSTEMS OF 1456 00:55:31,603 --> 00:55:32,804 CARE THAT MIGHT IMPROVE THEIR 1457 00:55:32,804 --> 00:55:33,338 LIVES. 1458 00:55:33,338 --> 00:55:35,540 SO WE HAVE SYSTEMS OF CARE THAT 1459 00:55:35,540 --> 00:55:39,144 ARE BUILT SO THAT THEY WON'T BE 1460 00:55:39,144 --> 00:55:39,611 SUCCESSFUL. 1461 00:55:39,611 --> 00:55:41,546 AND, YOU KNOW, THAT WOULD 1462 00:55:41,546 --> 00:55:44,749 INCLUDE SCHOOLS, THAT INCLUDES 1463 00:55:44,749 --> 00:55:47,018 TREATMENT CENTERS, EVEN INCLUDES 1464 00:55:47,018 --> 00:55:49,554 RESIDENTIAL HOUSING, IT INCLUDES 1465 00:55:49,554 --> 00:55:50,755 SHELTERS, ENVIRONMENTS LIKE 1466 00:55:50,755 --> 00:55:51,256 THAT. 1467 00:55:51,256 --> 00:55:53,725 ALL OF THESE HUMAN SERVICE 1468 00:55:53,725 --> 00:55:54,693 AGENCIES HAVE RULES AND 1469 00:55:54,693 --> 00:55:57,562 REGULATIONS WHICH THEY HAVE TO 1470 00:55:57,562 --> 00:55:59,197 HAVE, YOU KNOW, BUT WHAT HAPPENS 1471 00:55:59,197 --> 00:56:01,733 IS BECAUSE THERE'S NO 1472 00:56:01,733 --> 00:56:03,902 RECOGNITION THAT, OOH, THIS 1473 00:56:03,902 --> 00:56:04,869 PERSON'S BRAIN WORKS 1474 00:56:04,869 --> 00:56:07,739 DIFFERENTLY, MAYBE WE NEED TO 1475 00:56:07,739 --> 00:56:08,340 CHANGE HOW WE'RE STRUCTURED, 1476 00:56:08,340 --> 00:56:10,675 RATHER THAN HAVING A SET OF 1477 00:56:10,675 --> 00:56:11,976 RULES THAT HE MUST FOLLOW OR 1478 00:56:11,976 --> 00:56:13,244 WE'RE GOING TO KICK THEM OUT 1479 00:56:13,244 --> 00:56:15,380 BECAUSE THAT'S KIND OF THE WAY 1480 00:56:15,380 --> 00:56:17,449 IT WORKS IN MOST PLACES. 1481 00:56:17,449 --> 00:56:20,985 AND WE ALSO HAVE SYSTEMS OF CARE 1482 00:56:20,985 --> 00:56:25,023 IN THE HEALTHCARE ENVIRONMENT 1483 00:56:25,023 --> 00:56:26,658 WHERE WE'RE NOT ROUTINELY STILL 1484 00:56:26,658 --> 00:56:28,226 SCREENING AND PROVIDING BRIEF 1485 00:56:28,226 --> 00:56:29,961 INTERVENTION, THEN WE MADE A 1486 00:56:29,961 --> 00:56:39,938 GREAT -- WE HAD GREAT STRIDES IN 1487 00:56:39,938 --> 00:56:41,473 SBIR AND SBI, WHAT HAPPENED TO 1488 00:56:41,473 --> 00:56:43,575 REFERRAL TO TREATMENT? 1489 00:56:43,575 --> 00:56:45,977 WE DON'T PRACTICE THAT PART. 1490 00:56:45,977 --> 00:56:49,180 I WAS ACTUALLY AT AN STD CLINIC 1491 00:56:49,180 --> 00:56:51,883 IN BALTIMORE, DOING A WORKSHOP 1492 00:56:51,883 --> 00:56:54,185 THERE, FOR THE STAFF, AND 1493 00:56:54,185 --> 00:56:57,255 DIRECTLY ACROSS THE STREET WAS A 1494 00:56:57,255 --> 00:56:59,057 PROGRAM FOR WOMEN, PREGNANT 1495 00:56:59,057 --> 00:57:01,226 WOMEN, EVEN WOMEN WITH CHILDREN, 1496 00:57:01,226 --> 00:57:03,128 THE CAP PROGRAM. 1497 00:57:03,128 --> 00:57:06,331 I SAID, WELL, WHEN YOU HAVE 1498 00:57:06,331 --> 00:57:07,766 WOMEN THEY CLEARLY HAVE 1499 00:57:07,766 --> 00:57:08,633 ADDICTION PROBLEMS, YOU SEND 1500 00:57:08,633 --> 00:57:10,835 THEM THERE, SO COOL YOU'VE GOT 1501 00:57:10,835 --> 00:57:12,470 THIS PLACE, JUST WALK ACROSS THE 1502 00:57:12,470 --> 00:57:12,837 STREET. 1503 00:57:12,837 --> 00:57:14,205 OH, NO, WE NEVER DO THAT. 1504 00:57:14,205 --> 00:57:15,874 I SAID YOU NEVER DO THAT? 1505 00:57:15,874 --> 00:57:17,609 NO, THAT'S NOT THE MODEL. 1506 00:57:17,609 --> 00:57:22,714 LIKE THAT'S NOT THE MODEL? 1507 00:57:22,714 --> 00:57:24,549 OH, SO, I'VE LEARNED ALONG THE 1508 00:57:24,549 --> 00:57:26,851 WAY, BUT EVEN WHEN IT'S NOT THE 1509 00:57:26,851 --> 00:57:28,586 MODEL DO THE RIGHT THING FOR THE 1510 00:57:28,586 --> 00:57:28,920 HUMAN BEING. 1511 00:57:28,920 --> 00:57:30,155 THAT'S WHAT I WANT TO SAY. 1512 00:57:30,155 --> 00:57:32,757 DO THE RIGHT THING FOR THAT 1513 00:57:32,757 --> 00:57:33,324 PERSON. 1514 00:57:33,324 --> 00:57:34,392 BECAUSE IF THAT PERSON DOESN'T 1515 00:57:34,392 --> 00:57:36,694 TAKE THE TIME WHEN CLEARLY SHE'S 1516 00:57:36,694 --> 00:57:40,198 GOT TRACKS UP AND DOWN HER ARMS, 1517 00:57:40,198 --> 00:57:43,468 AND SHE'S IN THIS STD CLINIC AND 1518 00:57:43,468 --> 00:57:45,136 NEEDS TREATMENT, WHY WOULDN'T 1519 00:57:45,136 --> 00:57:45,770 YOU? 1520 00:57:45,770 --> 00:57:48,673 TO ME, IT'S JUST -- IT'S MIND 1521 00:57:48,673 --> 00:57:52,277 NUMBING, AFTER SO MANY YEARS. 1522 00:57:52,277 --> 00:57:55,013 SO LET ME JUST -- A QUICK STORY, 1523 00:57:55,013 --> 00:57:57,449 PERSONAL STORY. 1524 00:57:57,449 --> 00:57:59,184 BY THE WAY, I KNOW HUNDREDS -- 1525 00:57:59,184 --> 00:58:00,185 NO, THOUSANDS OF THESE STORIES. 1526 00:58:00,185 --> 00:58:02,353 I WOULD LOVE TO HAVE TIME TO 1527 00:58:02,353 --> 00:58:04,222 TELL YOU THOUSANDS OF STORIES. 1528 00:58:04,222 --> 00:58:06,524 I WILL TELL YOU OVER THE YEARS I 1529 00:58:06,524 --> 00:58:08,726 HAVE BECOME A SECRET KEEPER. 1530 00:58:08,726 --> 00:58:11,996 I HAVE WOMEN COME UP TO ME THAT 1531 00:58:11,996 --> 00:58:14,632 WHISPER IN MY EAR AND CRY, 1532 00:58:14,632 --> 00:58:16,501 WHETHER IN RECOVERY MEETINGS, 1533 00:58:16,501 --> 00:58:17,902 TWELVE-STEP RECOVERIES WHEN I 1534 00:58:17,902 --> 00:58:20,538 SPEAK PUBLICLY, AND THEY GIVE ME 1535 00:58:20,538 --> 00:58:22,507 THEIR SECRETS, TELL ME THINGS 1536 00:58:22,507 --> 00:58:24,275 ABOUT THEIR ABORTIONS, THEY TELL 1537 00:58:24,275 --> 00:58:28,947 ME THINGS ABOUT THEIR INFANT 1538 00:58:28,947 --> 00:58:30,615 DEATHS, THEY TELL ME WHEN THEY 1539 00:58:30,615 --> 00:58:32,150 ARE 70-SOME YEARS OLD ABOUT 1540 00:58:32,150 --> 00:58:34,552 THEIR CHILDREN THAT PROBABLY HAD 1541 00:58:34,552 --> 00:58:36,421 FASD BUT THEY NEVER HAD THE 1542 00:58:36,421 --> 00:58:37,455 COURAGE TO GET THEM DIAGNOSED 1543 00:58:37,455 --> 00:58:38,857 BECAUSE SHE DIDN'T WANT TO LIVE 1544 00:58:38,857 --> 00:58:39,891 WITH THAT KNOWLEDGE. 1545 00:58:39,891 --> 00:58:42,260 YOU KNOW, PEOPLE COME UP AND 1546 00:58:42,260 --> 00:58:43,761 TELL ME AND CONFESS. 1547 00:58:43,761 --> 00:58:45,063 YOU KNOW WHAT? 1548 00:58:45,063 --> 00:58:48,933 I'M OKAY WITH THAT. 1549 00:58:48,933 --> 00:58:49,901 I'LL TAKE THAT. 1550 00:58:49,901 --> 00:58:51,436 I HUG THEM, TELL THEM I LOVE 1551 00:58:51,436 --> 00:58:53,938 THEM, BECAUSE THIS IS A TOUGH 1552 00:58:53,938 --> 00:58:54,172 THING. 1553 00:58:54,172 --> 00:58:56,441 IT AFFECTS SO MANY PEOPLE. 1554 00:58:56,441 --> 00:58:58,109 IT IS AFFECTING A LOT OF PEOPLE. 1555 00:58:58,109 --> 00:59:00,078 SO, NOBODY WANTS TO HARM THEIR 1556 00:59:00,078 --> 00:59:00,945 OWN BABY. 1557 00:59:00,945 --> 00:59:04,549 THERE I AM, ABOUT TO BECOME A 1558 00:59:04,549 --> 00:59:04,849 VILLAIN. 1559 00:59:04,849 --> 00:59:07,285 I'M A 16-YEAR-OLD TENTH GRADER 1560 00:59:07,285 --> 00:59:07,619 THERE. 1561 00:59:07,619 --> 00:59:09,020 THAT IS PREGNANT IN HIGH SCHOOL. 1562 00:59:09,020 --> 00:59:11,789 I GREW UP IN AN ALCOHOLIC HOME. 1563 00:59:11,789 --> 00:59:13,324 MY DAD WAS AN ALCOHOLIC. 1564 00:59:13,324 --> 00:59:14,626 THERE WERE SEVEN KIDS. 1565 00:59:14,626 --> 00:59:16,127 MY PARENTS WERE REALLY GOOD 1566 00:59:16,127 --> 00:59:17,161 PARENTS. 1567 00:59:17,161 --> 00:59:18,763 WE WENT TO PAROCHIAL SCHOOL. 1568 00:59:18,763 --> 00:59:21,399 YOU KNOW, MY FATHER WAS VERY 1569 00:59:21,399 --> 00:59:24,903 SUCCESSFUL, HE DEALT WITH A 1570 00:59:24,903 --> 00:59:26,170 DISEASE THAT WAS STIGMATIZED, 1571 00:59:26,170 --> 00:59:29,073 AND INVISIBLE, AS FAR AS THE 1572 00:59:29,073 --> 00:59:29,574 TREATMENT. 1573 00:59:29,574 --> 00:59:31,576 JUST LIKE FASD. 1574 00:59:31,576 --> 00:59:34,078 SO, HE WOULD GO TO LOCAL 1575 00:59:34,078 --> 00:59:35,513 HOSPITALS AND THE DOCTOR WOULD 1576 00:59:35,513 --> 00:59:37,181 DO WHATEVER HE NEEDED TO DO TO 1577 00:59:37,181 --> 00:59:40,451 TREAT HIM, BUT THERE WAS NO 1578 00:59:40,451 --> 00:59:41,653 DETOX OR MENTION THAT, YOU 1579 00:59:41,653 --> 00:59:42,720 KNOW -- BECAUSE WE DIDN'T KNOW 1580 00:59:42,720 --> 00:59:44,389 THOSE THINGS BACK IN THOSE DAYS. 1581 00:59:44,389 --> 00:59:47,559 WE DO A LOT BETTER TODAY THAN WE 1582 00:59:47,559 --> 00:59:48,192 USED TO. 1583 00:59:48,192 --> 00:59:51,362 AND THIS IS A PICTURE OF ME 1584 00:59:51,362 --> 00:59:53,231 GIVING BIRTH, RIGHT AFTER I GAVE 1585 00:59:53,231 --> 00:59:55,767 BIRTH TO MY THIRD CHILD, SO I 1586 00:59:55,767 --> 00:59:57,168 GOT PREGNANT IN TENTH GRADE, 1587 00:59:57,168 --> 00:59:59,137 DROPPED OUT OF SCHOOL, DIDN'T 1588 00:59:59,137 --> 00:59:59,938 FINISH HIGH SCHOOL. 1589 00:59:59,938 --> 01:00:02,206 THERE WAS A LOT OF CHAOS. 1590 01:00:02,206 --> 01:00:03,741 GOOD HOME BUT FULL OF CHAOS 1591 01:00:03,741 --> 01:00:05,910 BECAUSE OF ALL THE DRINKING OF 1592 01:00:05,910 --> 01:00:07,579 MY DAD, AND MY MOTHER WAS NOT AN 1593 01:00:07,579 --> 01:00:10,848 ALCOHOLIC, TRIED TO KEEP THE 1594 01:00:10,848 --> 01:00:11,816 FAMILY TOGETHER. 1595 01:00:11,816 --> 01:00:16,020 BUT I LIKE THIS PICTURE BECAUSE 1596 01:00:16,020 --> 01:00:17,088 I HAD MY DAUGHTER NATURALLY. 1597 01:00:17,088 --> 01:00:23,561 I DID THE WHOLE LAMAZE, 1598 01:00:23,561 --> 01:00:24,762 BREATHING, HA-HA-HA, SOME OF YOU 1599 01:00:24,762 --> 01:00:25,096 KNOW. 1600 01:00:25,096 --> 01:00:27,832 NO DRUGS WHATSOEVER. 1601 01:00:27,832 --> 01:00:29,567 I WAS A VEGETARIAN THEN, A 1602 01:00:29,567 --> 01:00:31,436 REALLY GOOD MOMMY, A REALLY GOOD 1603 01:00:31,436 --> 01:00:31,936 MOTHER. 1604 01:00:31,936 --> 01:00:32,971 I LOVED MY KIDS! 1605 01:00:32,971 --> 01:00:34,806 BUT YOU KNOW, I DRANK WHEN I WAS 1606 01:00:34,806 --> 01:00:37,575 PREGNANT WITH HER! 1607 01:00:37,575 --> 01:00:40,078 I HAD NO IDEA NOT TO DRINK. 1608 01:00:40,078 --> 01:00:44,782 SO I DID ALL THESE THINGS TO BE 1609 01:00:44,782 --> 01:00:46,417 A REALLY DECENT MOTHER, AND YET 1610 01:00:46,417 --> 01:00:48,186 I DID THE VERY WORST THING YOU 1611 01:00:48,186 --> 01:00:49,053 CAN DO. 1612 01:00:49,053 --> 01:00:50,588 AND THAT WAS TO DRINK. 1613 01:00:50,588 --> 01:00:52,790 I DIDN'T DRINK EVERY DAY. 1614 01:00:52,790 --> 01:00:55,059 BUT I DRANK, YOU KNOW, LIKE WE 1615 01:00:55,059 --> 01:00:57,061 DRANK IN MY FAMILY. 1616 01:00:57,061 --> 01:00:57,695 YOU KNOW. 1617 01:00:57,695 --> 01:00:59,464 DRANK ON THE WEEKENDS, I DIDN'T 1618 01:00:59,464 --> 01:01:00,765 DRINK, YOU PROBABLY WOULDN'T 1619 01:01:00,765 --> 01:01:02,967 HAVE SAID, OH, SHE'S AN 1620 01:01:02,967 --> 01:01:04,769 ALCOHOLIC, YOU MIGHT HAVE, BUT 1621 01:01:04,769 --> 01:01:05,903 YOU MIGHT NOT HAVE. 1622 01:01:05,903 --> 01:01:07,338 I FUNCTIONED. 1623 01:01:07,338 --> 01:01:08,873 AND I HAD BLACKOUTS. 1624 01:01:08,873 --> 01:01:12,243 AND A LOT OF PEOPLE DRANK LIKE I 1625 01:01:12,243 --> 01:01:12,477 DID. 1626 01:01:12,477 --> 01:01:15,546 SO WHEN WE'RE NOT ASKING THE 1627 01:01:15,546 --> 01:01:18,282 QUESTIONS OR EDUCATING YOUNG 1628 01:01:18,282 --> 01:01:19,050 PEOPLE ABOUT THIS DISORDER, A 1629 01:01:19,050 --> 01:01:22,086 LOT OF IT REALLY IS EDUCATION, 1630 01:01:22,086 --> 01:01:24,522 FOR THE MAJORITY OF PEOPLE, IF 1631 01:01:24,522 --> 01:01:26,624 THEY HAVE THE FACTS THEY WILL 1632 01:01:26,624 --> 01:01:29,127 NOT DRINK DURING PREGNANCY. 1633 01:01:29,127 --> 01:01:32,497 AND THE PARTNERS WILL SUPPORT. 1634 01:01:32,497 --> 01:01:33,431 THEIR SPOUSE, THEIR PARTNERS, 1635 01:01:33,431 --> 01:01:35,667 LOVED ONES, NOT TO DRINK. 1636 01:01:35,667 --> 01:01:37,935 PEOPLE UNDERSTAND THE SCIENCE 1637 01:01:37,935 --> 01:01:39,937 ONCE THEY LEARN. 1638 01:01:39,937 --> 01:01:43,975 YOU KNOW, FOR ME, I DO HAVE THE 1639 01:01:43,975 --> 01:01:45,309 DISEASE OF ADDICTION. 1640 01:01:45,309 --> 01:01:48,146 I HAD -- I BELIEVE I HAD AN 1641 01:01:48,146 --> 01:01:51,382 ALCOHOL USE DISORDER, AND DRUGS 1642 01:01:51,382 --> 01:01:54,485 WERE VERY PART OF THE 1643 01:01:54,485 --> 01:01:55,920 ENVIRONMENT. 1644 01:01:55,920 --> 01:01:57,555 I WAS A WOODSTOCK KID, DRUGS 1645 01:01:57,555 --> 01:01:58,856 EVERYWHERE, AT MY HIGH SCHOOL. 1646 01:01:58,856 --> 01:02:02,026 VERY COMMON FOR PEOPLE TO BE 1647 01:02:02,026 --> 01:02:04,228 USING AMPHETAMINES AND SMOKING 1648 01:02:04,228 --> 01:02:06,097 WEED AND TAKING BARBITURATES AND 1649 01:02:06,097 --> 01:02:07,632 ALL THESE SORTS OF THINGS. 1650 01:02:07,632 --> 01:02:11,703 SO I HAD ALL THESE POLY 1651 01:02:11,703 --> 01:02:12,870 SUBSTANCE ADDICTIONS GOING ON. 1652 01:02:12,870 --> 01:02:15,740 AND I THINK THAT ONE OF THE 1653 01:02:15,740 --> 01:02:17,275 THINGS THAT WE UNDERSTAND, WE 1654 01:02:17,275 --> 01:02:21,946 WANT TO BE SENSITIVE TO THE FACT 1655 01:02:21,946 --> 01:02:24,682 THAT NOT EVERYBODY THAT HAS AN 1656 01:02:24,682 --> 01:02:25,783 EXPERIENCE OF USE DURING 1657 01:02:25,783 --> 01:02:27,652 PREGNANCY HAS AN ALCOHOL OR 1658 01:02:27,652 --> 01:02:28,386 SUBSTANCE USE DISORDER. 1659 01:02:28,386 --> 01:02:29,187 THIS IS TRUE. 1660 01:02:29,187 --> 01:02:32,690 BUT I WILL TELL YOU THE MAJORITY 1661 01:02:32,690 --> 01:02:37,495 OF WOMEN THAT HAVE CHILDREN WITH 1662 01:02:37,495 --> 01:02:39,931 A DIAGNOSIS, WITH EFFECTS WHERE 1663 01:02:39,931 --> 01:02:41,866 WE UNDERSTAND THIS HAPPENED DUE 1664 01:02:41,866 --> 01:02:43,735 TO ALCOHOL, DO HAVE AN ALCOHOL 1665 01:02:43,735 --> 01:02:44,736 OR SUBSTANCE USE DISORDER, AND 1666 01:02:44,736 --> 01:02:47,905 UNDERSTAND THAT THIS IS A 1667 01:02:47,905 --> 01:02:49,307 PROGRESSIVE DISEASE. 1668 01:02:49,307 --> 01:02:50,742 SO, NOT EVERYBODY WILL BE 1669 01:02:50,742 --> 01:02:52,276 VISIBLE TO THE REST OF THE 1670 01:02:52,276 --> 01:02:52,477 WORLD. 1671 01:02:52,477 --> 01:02:54,679 YOU MAY NOT THINK OF THIS 1672 01:02:54,679 --> 01:02:56,547 PERSON, YOU KNOW, LIKE THE OLD 1673 01:02:56,547 --> 01:02:58,816 POSTERS, WHO IS AN ALCOHOLIC, 1674 01:02:58,816 --> 01:03:00,518 NOT EVERYBODY IS DOWN AND OUT 1675 01:03:00,518 --> 01:03:02,553 LIVING ON THE STREETS. 1676 01:03:02,553 --> 01:03:03,955 PEOPLE HAVE BIG JOBS, BIG 1677 01:03:03,955 --> 01:03:05,957 DEGREES, THEY GO TO WORK, THEY 1678 01:03:05,957 --> 01:03:07,825 RUN BIG COMPANIES. 1679 01:03:07,825 --> 01:03:09,460 YOU KNOW, THEY -- BUT THEY STILL 1680 01:03:09,460 --> 01:03:11,629 ARE DEALING WITH AN ALCOHOL USE 1681 01:03:11,629 --> 01:03:12,096 DISORDER. 1682 01:03:12,096 --> 01:03:12,296 OKAY? 1683 01:03:12,296 --> 01:03:14,165 SO, AGAIN WE'VE GOT PROVIDERS 1684 01:03:14,165 --> 01:03:16,033 THAT ARE AFRAID TO ASK. 1685 01:03:16,033 --> 01:03:18,970 THEY DON'T KNOW HOW TO ASK. 1686 01:03:18,970 --> 01:03:20,605 THEY DON'T KNOW WHAT TO DO WITH 1687 01:03:20,605 --> 01:03:21,939 HER IF THEY DO ASK. 1688 01:03:21,939 --> 01:03:23,808 SO, YOU KNOW, IF THERE'S NO 1689 01:03:23,808 --> 01:03:24,776 SOLUTION, NO PROBLEM, I'M NOT 1690 01:03:24,776 --> 01:03:26,644 GOING TO BRING IT UP BECAUSE I 1691 01:03:26,644 --> 01:03:28,613 REALLY DON'T KNOW, IF SHE TELLS 1692 01:03:28,613 --> 01:03:29,914 ME, NO, NO, NO, PLEASE DON'T 1693 01:03:29,914 --> 01:03:34,852 TELL ME YOU NEED HELP BECAUSE I 1694 01:03:34,852 --> 01:03:37,388 DON'T KNOW WHERE TO SEND YOU. 1695 01:03:37,388 --> 01:03:39,223 THAT'S ANOTHER BIG PROBLEM. 1696 01:03:39,223 --> 01:03:39,791 WHY NOT? 1697 01:03:39,791 --> 01:03:40,992 TREATMENT IS EVERY WHERE. 1698 01:03:40,992 --> 01:03:43,161 TREATMENT IS AVAILABLE. 1699 01:03:43,161 --> 01:03:44,462 BUT THIS IDEA, THIS KIND OF THE 1700 01:03:44,462 --> 01:03:46,564 WAY PEOPLE CLOSE IT OFF, WELL, 1701 01:03:46,564 --> 01:03:49,233 THERE'S REALLY NO HELP FOR 1702 01:03:49,233 --> 01:03:49,600 PREGNANT WOMEN. 1703 01:03:49,600 --> 01:03:51,402 THAT'S NOT TRUE! 1704 01:03:51,402 --> 01:03:53,704 GO TO THE SAMHSA, YOU KNOW, 1705 01:03:53,704 --> 01:03:54,071 WEBSITE. 1706 01:03:54,071 --> 01:03:55,206 THAT IS NOT TRUE. 1707 01:03:55,206 --> 01:03:56,107 OR CALL ME. 1708 01:03:56,107 --> 01:03:57,842 I'LL FIND TREATMENT FOR THEM. 1709 01:03:57,842 --> 01:03:59,043 BECAUSE I WILL. 1710 01:03:59,043 --> 01:04:02,780 AND WOMEN ARE SCARED TO DEATH TO 1711 01:04:02,780 --> 01:04:04,749 TELL ABOUT USE BECAUSE THEY 1712 01:04:04,749 --> 01:04:06,184 DON'T KNOW WHAT YOU'RE GOING TO 1713 01:04:06,184 --> 01:04:08,019 DO WITH THAT INFORMATION. 1714 01:04:08,019 --> 01:04:09,787 WE HAVE THIS NOW, WHICH HAS 1715 01:04:09,787 --> 01:04:12,290 GOTTEN REALLY CRAZY, WE WON'T 1716 01:04:12,290 --> 01:04:13,925 TALK ABOUT, THAT PEOPLE ARE 1717 01:04:13,925 --> 01:04:15,560 SCARED TO DEATH TO TALK ABOUT 1718 01:04:15,560 --> 01:04:16,427 USE DURING PREGNANCY. 1719 01:04:16,427 --> 01:04:18,129 DOES THAT MEAN YOU'RE GOING TO 1720 01:04:18,129 --> 01:04:19,163 TRY TO TAKE MY BABY? 1721 01:04:19,163 --> 01:04:21,032 OR TAKE MY THREE KIDS THAT I 1722 01:04:21,032 --> 01:04:22,133 HAVE AT HOME? 1723 01:04:22,133 --> 01:04:24,101 I'M GOING TO ZIP IT UP AND NOT 1724 01:04:24,101 --> 01:04:24,502 TALK. 1725 01:04:24,502 --> 01:04:26,204 WE HAVE THIS DYNAMIC WHERE WE 1726 01:04:26,204 --> 01:04:27,605 DON'T TALK. 1727 01:04:27,605 --> 01:04:30,575 I WENT ALONG, I HAD THREE KIDS, 1728 01:04:30,575 --> 01:04:34,312 NO IDEA THAT MY -- THE GIRL IN 1729 01:04:34,312 --> 01:04:36,480 THE YELLOW SHIRT HAS FETAL 1730 01:04:36,480 --> 01:04:37,515 ALCOHOL SYNDROME. 1731 01:04:37,515 --> 01:04:39,584 AND MY OTHER TWO CHILDREN WERE 1732 01:04:39,584 --> 01:04:43,521 BOTH EXPOSED BUT DO NOT HAVE A 1733 01:04:43,521 --> 01:04:45,790 DIAGNOSIS OF FASDs BUT THAT 1734 01:04:45,790 --> 01:04:48,993 DOESN'T MEAN THEY WEREN'T 1735 01:04:48,993 --> 01:04:49,260 IMPACTED. 1736 01:04:49,260 --> 01:04:52,697 AND I'M SURE THEY WERE, IN MANY 1737 01:04:52,697 --> 01:04:53,798 WAYS. 1738 01:04:53,798 --> 01:04:55,099 BUT THIS IS MY BEAUTIFUL 1739 01:04:55,099 --> 01:04:57,635 DAUGHTER KARLI. 1740 01:04:57,635 --> 01:04:59,737 YOU JUST HEARD DR. JONES GIVE 1741 01:04:59,737 --> 01:05:01,772 YOU AN OVERVIEW OF THE FACIAL 1742 01:05:01,772 --> 01:05:03,975 FEATURES, AND THAT'S A GREAT 1743 01:05:03,975 --> 01:05:05,409 PICTURE RIGHT THERE THAT SHOWS 1744 01:05:05,409 --> 01:05:07,712 THE FACIAL FEATURES OF FETAL 1745 01:05:07,712 --> 01:05:08,679 ALCOHOL SYNDROME. 1746 01:05:08,679 --> 01:05:13,818 WHAT WE DID IN OUR FAMILY WAS -- 1747 01:05:13,818 --> 01:05:17,321 WELL, WHO DOES SHE LOOK LIKE? 1748 01:05:17,321 --> 01:05:20,858 SHE LOOKS DIFFERENT, LIKE 1749 01:05:20,858 --> 01:05:22,260 GRANDMA DELVECCHIO, THE THIN 1750 01:05:22,260 --> 01:05:22,426 LIP. 1751 01:05:22,426 --> 01:05:24,462 I FOUND OUT YEARS LATER GRANDMA 1752 01:05:24,462 --> 01:05:26,631 DELVECCHIO GREW UP ON TOP OF A 1753 01:05:26,631 --> 01:05:26,998 BAR. 1754 01:05:26,998 --> 01:05:28,499 SO AGAIN, WHO KNOWS? 1755 01:05:28,499 --> 01:05:31,135 BUT MY DAUGHTER WAS NOT 1756 01:05:31,135 --> 01:05:34,772 DIAGNOSED UNTIL I READ ABOUT 1757 01:05:34,772 --> 01:05:36,307 YOUR PAPER, BECAUSE I HEARD 1758 01:05:36,307 --> 01:05:39,443 PEOPLE TALKING ABOUT THIS WAS 1759 01:05:39,443 --> 01:05:41,212 DURING THE CRACK EPIDEMIC, 1760 01:05:41,212 --> 01:05:42,947 TALKING ABOUT CRACK BABIES, HATE 1761 01:05:42,947 --> 01:05:44,949 THOSE TERMS, A TERM USED, I 1762 01:05:44,949 --> 01:05:46,284 THOUGHT, WELL, I DIDN'T USE 1763 01:05:46,284 --> 01:05:48,552 CRACK BUT I DRANK WINE BUT WHAT 1764 01:05:48,552 --> 01:05:50,121 THEY ARE DESCRIBING SEEMS TO BE 1765 01:05:50,121 --> 01:05:51,622 WHAT MY DAUGHTER HAS. 1766 01:05:51,622 --> 01:05:54,692 I WENT TO THE LIBRARY AND 1767 01:05:54,692 --> 01:05:55,593 STARTED LOOKING UP WHAT CAN 1768 01:05:55,593 --> 01:05:56,060 ALCOHOL DO. 1769 01:05:56,060 --> 01:05:58,729 I READ ABOUT IT. 1770 01:05:58,729 --> 01:05:59,830 THAT'S HOW KARLI CAME TO BE 1771 01:05:59,830 --> 01:06:00,364 DIAGNOSED. 1772 01:06:00,364 --> 01:06:03,467 I BROUGHT HER TO GEORGETOWN 1773 01:06:03,467 --> 01:06:04,035 HOSPITAL. 1774 01:06:04,035 --> 01:06:04,969 AND UNIVERSITY HOSPITAL. 1775 01:06:04,969 --> 01:06:06,837 SHE WOULD HAVE NEVER BEEN 1776 01:06:06,837 --> 01:06:08,606 DIAGNOSED HAD I NOT FIGURED IT 1777 01:06:08,606 --> 01:06:09,140 OUT. 1778 01:06:09,140 --> 01:06:11,108 THAT STILL GOES ON. 1779 01:06:11,108 --> 01:06:13,177 SO, ONE OF THE THINGS I DID IN 1780 01:06:13,177 --> 01:06:18,749 MY ROLE WHEN I WAS AT NOFAS, A 1781 01:06:18,749 --> 01:06:20,117 LOT OF MEDIA, A STORY FOR THE 1782 01:06:20,117 --> 01:06:21,052 "WASHINGTON POST." 1783 01:06:21,052 --> 01:06:24,088 IT WAS READ BY OVER 8 MILLION 1784 01:06:24,088 --> 01:06:25,056 PEOPLE ON DAY 3. 1785 01:06:25,056 --> 01:06:29,293 IT GOT A LOT OF ATTENTION. 1786 01:06:29,293 --> 01:06:31,228 THAT'S WHAT REALLY SPARKED THE 1787 01:06:31,228 --> 01:06:33,631 MONEY THAT WENT INTO STIGMA 1788 01:06:33,631 --> 01:06:35,399 BECAUSE IT REALLY BROUGHT TO THE 1789 01:06:35,399 --> 01:06:36,367 FOREFRONT HOW PEOPLE REALLY 1790 01:06:36,367 --> 01:06:37,735 THOUGHT ABOUT THIS. 1791 01:06:37,735 --> 01:06:40,237 AND THE TWO BIG COMMENTS FELL 1792 01:06:40,237 --> 01:06:41,739 INTO TWO CATEGORIES. 1793 01:06:41,739 --> 01:06:42,974 SHE'S A LIAR. 1794 01:06:42,974 --> 01:06:44,742 SHE USED A LOT MORE AND USED 1795 01:06:44,742 --> 01:06:46,377 DRUGS AND SHE'S DOWN AND OUT, 1796 01:06:46,377 --> 01:06:48,479 SHE'S A TERRIBLE PERSON, AND 1797 01:06:48,479 --> 01:06:49,347 SHOULD BE INCARCERATED. 1798 01:06:49,347 --> 01:06:51,115 AND THERE'S NO SUCH THING AS 1799 01:06:51,115 --> 01:06:52,183 FETAL ALCOHOL SYNDROME. 1800 01:06:52,183 --> 01:06:53,718 THAT ONLY HAPPENS TO DOWN AND 1801 01:06:53,718 --> 01:06:56,120 OUT PEOPLE THAT ALSO USE DRUGS. 1802 01:06:56,120 --> 01:06:58,990 I MEAN, I'M PUTTING THEM INTO 1803 01:06:58,990 --> 01:07:00,224 THE EXTREME CATEGORIES BUT THERE 1804 01:07:00,224 --> 01:07:01,492 WAS A LOT OF THAT. 1805 01:07:01,492 --> 01:07:04,228 SO PEOPLE, THE GENERAL PUBLIC, 1806 01:07:04,228 --> 01:07:05,663 STILL DON'T UNDERSTAND ABOUT 1807 01:07:05,663 --> 01:07:07,865 SUBSTANCE USE DISORDERS, ALCOHOL 1808 01:07:07,865 --> 01:07:09,166 USE DISORDERS, OR FASDs. 1809 01:07:09,166 --> 01:07:11,135 GUYS, WE NEED TO GET THE MESSAGE 1810 01:07:11,135 --> 01:07:11,802 OUT THERE. 1811 01:07:11,802 --> 01:07:18,242 WE NEED TO DO A BETTER JOB. 1812 01:07:18,242 --> 01:07:20,211 AND WOMEN THAT USE ALCOHOL OFTEN 1813 01:07:20,211 --> 01:07:22,780 ARE USING OTHER DRUGS, SO WHEN 1814 01:07:22,780 --> 01:07:26,917 YOU HAVE A WOMAN, MY PRIMARY USE 1815 01:07:26,917 --> 01:07:28,886 WAS I WAS A HEROIN ADDICT, 1816 01:07:28,886 --> 01:07:30,588 NOBODY EVER ASKED ME ABOUT MY 1817 01:07:30,588 --> 01:07:31,188 ALCOHOL USE. 1818 01:07:31,188 --> 01:07:34,592 I THINK THAT WHAT WE DO, WE PUT 1819 01:07:34,592 --> 01:07:36,327 PEOPLE INTO CATEGORIES, WE DON'T 1820 01:07:36,327 --> 01:07:38,429 UNDERSTAND THAT WOMEN THAT ARE 1821 01:07:38,429 --> 01:07:40,398 USING DRUGS OR USING ALCOHOL, 1822 01:07:40,398 --> 01:07:42,233 WOMEN USING ALCOHOL MAY BE USING 1823 01:07:42,233 --> 01:07:43,034 OTHER SUBSTANCES. 1824 01:07:43,034 --> 01:07:44,335 THEY DO GO HAND IN HAND. 1825 01:07:44,335 --> 01:07:46,971 NOW WE'VE GOT A PROBLEM WITH 1826 01:07:46,971 --> 01:07:49,040 MARIJUANA BECAUSE MARIJUANA IS 1827 01:07:49,040 --> 01:07:51,242 BEING LEGALIZED, IN A LOT OF 1828 01:07:51,242 --> 01:07:53,077 PLACES, AND THE PROBLEM WITH 1829 01:07:53,077 --> 01:07:55,479 THAT IS PEOPLE ARE MINIMIZING 1830 01:07:55,479 --> 01:07:57,248 THEIR USE, AND IT'S A VERY 1831 01:07:57,248 --> 01:08:01,285 COMMON THING AND WE KNOW THROUGH 1832 01:08:01,285 --> 01:08:02,720 RESEARCH THAT ALCOHOL COUPLED 1833 01:08:02,720 --> 01:08:04,355 WITH MARIJUANA IS PUTTING THEM 1834 01:08:04,355 --> 01:08:06,223 AT HIGHER RISK FOR MORE SEVERE 1835 01:08:06,223 --> 01:08:06,457 EFFECTS. 1836 01:08:06,457 --> 01:08:07,425 SO THAT'S WHY I THINK WE'RE 1837 01:08:07,425 --> 01:08:13,998 GOING TO SEE MORE AND MORE OF 1838 01:08:13,998 --> 01:08:16,434 THIS THAN WE SEE. 1839 01:08:16,434 --> 01:08:19,703 I WANT TO END THIS TALK QUICKLY, 1840 01:08:19,703 --> 01:08:22,540 TO GET US BACK ON TRACK, SO I 1841 01:08:22,540 --> 01:08:24,842 THINK THAT ONE OF THE THINGS I 1842 01:08:24,842 --> 01:08:26,677 SEE IS WE'RE NOT ASKING THE 1843 01:08:26,677 --> 01:08:26,944 QUESTIONS. 1844 01:08:26,944 --> 01:08:28,612 I RUN A GROUP WEEKLY, I'M GOING 1845 01:08:28,612 --> 01:08:30,081 TO TELL YOU ABOUT THAT AT THE 1846 01:08:30,081 --> 01:08:34,251 END ONLINE, I STILL TALK TO A 1847 01:08:34,251 --> 01:08:36,454 LOT OF WOMEN I THAT ONE WOMAN 1848 01:08:36,454 --> 01:08:41,025 FROM MICHIGAN TELL ME, SHE HAD 1849 01:08:41,025 --> 01:08:42,993 GONE TO A NEW PHYSICIAN, WAS IN 1850 01:08:42,993 --> 01:08:44,762 THE SERVICE, WENT TO A NEW 1851 01:08:44,762 --> 01:08:45,963 PHYSICIAN, HAD BEEN DRINKING, 1852 01:08:45,963 --> 01:08:47,498 HER HUSBAND WAS DEPLOYED. 1853 01:08:47,498 --> 01:08:49,233 SHE WAS DRINKING, AND SHE SAID 1854 01:08:49,233 --> 01:08:51,769 THE NEW DOCTOR DIDN'T ASK HER, 1855 01:08:51,769 --> 01:08:52,970 JUST SAID LIKE YOU DON'T DRINK 1856 01:08:52,970 --> 01:08:54,939 OR USE DRUGS OR ANYTHING LIKE 1857 01:08:54,939 --> 01:08:56,373 THAT, SHE SAID, RIGHT, RIGHT, 1858 01:08:56,373 --> 01:08:58,142 NEVER ASKED HER AGAIN. 1859 01:08:58,142 --> 01:08:59,643 SHE WAS SECRETLY DRINKING. 1860 01:08:59,643 --> 01:09:02,179 SHE HAD JUST HAD HER 4-YEAR-OLD 1861 01:09:02,179 --> 01:09:02,646 DIAGNOSED. 1862 01:09:02,646 --> 01:09:05,449 SO WE NEED TO ASK WOMEN OVER AND 1863 01:09:05,449 --> 01:09:08,185 OVER AGAIN AT EVERY APPOINTMENT, 1864 01:09:08,185 --> 01:09:08,953 CERTAINLY WHEN THEY ARE 1865 01:09:08,953 --> 01:09:09,220 PREGNANT. 1866 01:09:09,220 --> 01:09:11,589 WE NEED TO BE ASKING THE 1867 01:09:11,589 --> 01:09:12,823 QUESTIONS, TREATMENT CENTERS, 1868 01:09:12,823 --> 01:09:16,994 ADDICTION TREATMENT CENTERS, 1869 01:09:16,994 --> 01:09:23,000 STILL ARE NOT EVEN THINKING 1870 01:09:23,000 --> 01:09:23,667 ABOUT FASDs. 1871 01:09:23,667 --> 01:09:24,969 I SEE CHILDREN'S FACES ON ZOOM, 1872 01:09:24,969 --> 01:09:25,970 ON MY CALLS. 1873 01:09:25,970 --> 01:09:27,471 I CAN TELL YOU I'M NOT A 1874 01:09:27,471 --> 01:09:29,006 PHYSICIAN BUT I CAN TELL YOU 1875 01:09:29,006 --> 01:09:30,741 THAT'S A CHILD WITH FETAL 1876 01:09:30,741 --> 01:09:34,245 ALCOHOL SYNDROME. 1877 01:09:34,245 --> 01:09:35,880 THEY HAVE NO IDEA. 1878 01:09:35,880 --> 01:09:41,485 WE HAVE WOMEN FROM CHILD WELFARE 1879 01:09:41,485 --> 01:09:41,752 COMING ON. 1880 01:09:41,752 --> 01:09:43,888 THEY ARE HEARING FROM PEOPLE 1881 01:09:43,888 --> 01:09:50,361 LIKE MY DEAR FRIEND STEPHANIE. 1882 01:09:50,361 --> 01:09:51,095 AND MYSELF. 1883 01:09:51,095 --> 01:09:52,096 IT'S UNBELIEVABLE. 1884 01:09:52,096 --> 01:09:55,366 ALL TREATMENT CENTERS THAT COME 1885 01:09:55,366 --> 01:09:56,901 ON MY CALLS ALL RECEIVED 1886 01:09:56,901 --> 01:09:57,668 GOVERNMENT FUNDING. 1887 01:09:57,668 --> 01:09:59,403 WHY AREN'T THEY HEARING ABOUT 1888 01:09:59,403 --> 01:09:59,737 IT? 1889 01:09:59,737 --> 01:10:09,713 WHY AREN'T THERE MEASURED 1890 01:10:09,713 --> 01:10:09,980 OUTCOMES. 1891 01:10:09,980 --> 01:10:11,815 WHY ISN'T THERE A MEASURED WAY 1892 01:10:11,815 --> 01:10:13,584 THEY ARE BEING TAUGHT ABOUT 1893 01:10:13,584 --> 01:10:14,451 FETAL ALCOHOL SPECTRUM 1894 01:10:14,451 --> 01:10:14,852 DISORDERS. 1895 01:10:14,852 --> 01:10:19,490 SAME WITH I THINK EVERY SINGLE 1896 01:10:19,490 --> 01:10:20,591 GOVERNMENT AGENCY OUGHT TO BE 1897 01:10:20,591 --> 01:10:21,559 WEAVING THIS IN. 1898 01:10:21,559 --> 01:10:24,962 THERE'S NO QUICK FIX TO THIS. 1899 01:10:24,962 --> 01:10:26,030 MEDICATION-ASSISTED TREATMENT IS 1900 01:10:26,030 --> 01:10:26,497 FINE. 1901 01:10:26,497 --> 01:10:28,132 IT SHOULDN'T BE, OKAY, SHE'S ON 1902 01:10:28,132 --> 01:10:28,332 THAT. 1903 01:10:28,332 --> 01:10:29,433 WE SHOULDN'T HAVE PEOPLE ON 1904 01:10:29,433 --> 01:10:31,502 MEDICATION FOR THE REST OF THEIR 1905 01:10:31,502 --> 01:10:31,735 LIVES. 1906 01:10:31,735 --> 01:10:33,604 THAT'S A STEP DOWN THING. 1907 01:10:33,604 --> 01:10:36,106 THAT'S A THING AT SOME POINT WE 1908 01:10:36,106 --> 01:10:42,246 WANT TO GET THEM OFF OF, I 1909 01:10:42,246 --> 01:10:44,081 THINK, FOR THEIR LIFE, FOR THE 1910 01:10:44,081 --> 01:10:49,119 QUALITY OF THEIR LIFE, AND WE 1911 01:10:49,119 --> 01:10:50,254 HAVE SEEN WOMEN, YOU KNOW, 1912 01:10:50,254 --> 01:10:51,222 DEALING WITH THESE. 1913 01:10:51,222 --> 01:10:57,361 I CAN'T REALLY GET INTO THIS 1914 01:10:57,361 --> 01:10:58,996 BECAUSE I'M FEELING PUSHED TO 1915 01:10:58,996 --> 01:11:01,966 END THIS TALK BUT WE CAN DO 1916 01:11:01,966 --> 01:11:04,835 MORE, WE NEED TO INCLUDE FASD 1917 01:11:04,835 --> 01:11:06,570 INTO EVERY SINGLE THING WE'RE 1918 01:11:06,570 --> 01:11:08,539 DOING WHEN WE'RE DEALING WITH 1919 01:11:08,539 --> 01:11:09,473 HUMAN SERVICE AGENCIES. 1920 01:11:09,473 --> 01:11:11,275 AND WE ALSO NEED TO UNDERSTAND 1921 01:11:11,275 --> 01:11:13,143 THAT WOMEN AND THEIR FAMILIES 1922 01:11:13,143 --> 01:11:14,878 ARE RESILIENT. 1923 01:11:14,878 --> 01:11:18,616 PEOPLE WITH FASDs ARE 1924 01:11:18,616 --> 01:11:18,949 RESILIENT. 1925 01:11:18,949 --> 01:11:21,885 THEY DO WELL WHEN WE HAVE 1926 01:11:21,885 --> 01:11:25,055 ENVIRONMENTS THAT MATCH THEIR 1927 01:11:25,055 --> 01:11:25,256 NEEDS. 1928 01:11:25,256 --> 01:11:29,994 I PUT THIS MOTHER'S WISH LIST 1929 01:11:29,994 --> 01:11:30,861 TOGETHER HERE. 1930 01:11:30,861 --> 01:11:32,062 I'VE ADDRESSED SOME. 1931 01:11:32,062 --> 01:11:36,033 BUT IN EVERY SYSTEM OF CARE, 1932 01:11:36,033 --> 01:11:37,201 WHEN WE'RE DEVELOPING APPS, 1933 01:11:37,201 --> 01:11:38,769 BEING FUNDED TO DO WHATEVER IT 1934 01:11:38,769 --> 01:11:41,472 IS THAT WE DO, IN OUR WORLD, 1935 01:11:41,472 --> 01:11:45,309 PLEASE MAKE SURE THAT FASD IS 1936 01:11:45,309 --> 01:11:46,543 WOVEN INTO THAT. 1937 01:11:46,543 --> 01:11:47,945 WOMEN CAN AND DO RECOVER. 1938 01:11:47,945 --> 01:11:49,580 THEY GET TO BE THE MOTHERS, THEY 1939 01:11:49,580 --> 01:11:52,016 GET TO BE THE PARTNERS, YOU 1940 01:11:52,016 --> 01:11:56,287 KNOW, THEIR CHILDREN GET TO HAVE 1941 01:11:56,287 --> 01:11:57,821 THEIR MOTHERS BACK WHEN WE PAY 1942 01:11:57,821 --> 01:11:59,657 ATTENTION TO THE MOMS. 1943 01:11:59,657 --> 01:12:04,828 THIS IS THE GROUP I HAD 1944 01:12:04,828 --> 01:12:06,563 MENTIONED, RECOVERING MOTHERS 1945 01:12:06,563 --> 01:12:07,765 ANONYMOUS, A 12-STEP GROUP, AND 1946 01:12:07,765 --> 01:12:10,401 IT'S NOT FOR WOMEN WHO ARE IN 1947 01:12:10,401 --> 01:12:11,802 RECOVERY FROM ADDICTION. 1948 01:12:11,802 --> 01:12:14,571 IT'S FOR WOMEN IN RECOVERY FROM 1949 01:12:14,571 --> 01:12:16,440 HAVING THE LIVED EXPERIENCE OF 1950 01:12:16,440 --> 01:12:17,508 USE DURING PREGNANCY. 1951 01:12:17,508 --> 01:12:19,610 ALL WOMEN ARE WELCOME TO THAT. 1952 01:12:19,610 --> 01:12:23,447 AND WE SUPPORT EACH OTHER. 1953 01:12:23,447 --> 01:12:25,849 AND I JUST DID INCLUDE -- WANTED 1954 01:12:25,849 --> 01:12:27,384 TO INCLUDE GOOD WORK FASD UNITED 1955 01:12:27,384 --> 01:12:28,018 IS DOING. 1956 01:12:28,018 --> 01:12:30,888 THEY HAVE GONE IN A GREAT 1957 01:12:30,888 --> 01:12:32,856 DIRECTION, FOCUSING ON THE LIVES 1958 01:12:32,856 --> 01:12:35,025 OF PEOPLE LIVING WITH FASDs, 1959 01:12:35,025 --> 01:12:37,461 WHICH ARE REALLY GREAT BUT LET'S 1960 01:12:37,461 --> 01:12:39,396 NOT FORGET ABOUT PREVENTION. 1961 01:12:39,396 --> 01:12:40,597 AND THAT WE CAN PREVENT THIS 1962 01:12:40,597 --> 01:12:43,233 THING AND WE CAN GET WOMEN THE 1963 01:12:43,233 --> 01:12:44,768 HELP THEY NEED AND TREATMENT 1964 01:12:44,768 --> 01:12:45,235 THEY NEED. 1965 01:12:45,235 --> 01:12:48,038 THANK YOU SO MUCH. 1966 01:12:48,038 --> 01:12:54,178 1967 01:12:54,178 --> 01:13:04,021 1968 01:13:04,021 --> 01:13:07,891 >> THARCHG 1969 01:13:07,891 --> 01:13:09,426 THANK YOU FOR YOUR LIVED 1970 01:13:09,426 --> 01:13:10,227 EXPERIENCE AND CONSIDERATIONS 1971 01:13:10,227 --> 01:13:12,596 FOR ALL OF US. 1972 01:13:12,596 --> 01:13:13,997 NEXT SPEAKER IS DR. JANINE 1973 01:13:13,997 --> 01:13:24,541 CLAYTON FROM OFFICE OF RESEARCH 1974 01:13:26,009 --> 01:13:27,678 ON WOMEN'S HEALTH OF THE SHE'S 1975 01:13:27,678 --> 01:13:29,346 THE ASSOCIATE DIRECTOR FOR 1976 01:13:29,346 --> 01:13:30,280 RESEARCH ON WOMEN'S HEALTH AND 1977 01:13:30,280 --> 01:13:31,615 DIRECTOR OF THE OFFICE OF 1978 01:13:31,615 --> 01:13:33,550 RESEARCH ON WOMEN'S HEALTH AT 1979 01:13:33,550 --> 01:13:34,351 THE NATIONAL INSTITUTES OF 1980 01:13:34,351 --> 01:13:35,018 HEALTH. 1981 01:13:35,018 --> 01:13:37,955 AND IS THE ARCHITECT OF THE NIH 1982 01:13:37,955 --> 01:13:38,856 POLICY REQUIRING SCIENTISTS TO 1983 01:13:38,856 --> 01:13:41,458 CONSIDER SEX AS A BIOLOGICAL 1984 01:13:41,458 --> 01:13:43,994 VARIABLE ACROSS THE RESEARCH 1985 01:13:43,994 --> 01:13:44,328 SPECTRUM. 1986 01:13:44,328 --> 01:13:47,398 THIS POLICY IS PART OF NIH'S 1987 01:13:47,398 --> 01:13:48,899 INITIATIVE TO ENHANCE 1988 01:13:48,899 --> 01:13:53,837 REPRODUCIBILITY THROUGH RIGOR 1989 01:13:53,837 --> 01:13:55,139 AND TRANSPARENCY. 1990 01:13:55,139 --> 01:13:57,007 AS CO-CHAIR OF THE WORKING GROUP 1991 01:13:57,007 --> 01:13:59,576 ON WOMEN IN BIOMEDICAL CAREERS, 1992 01:13:59,576 --> 01:14:01,512 DR. CLAYTON LEADS NIH EFFORTS TO 1993 01:14:01,512 --> 01:14:03,680 ADVANCE WOMEN IN SCIENCE 1994 01:14:03,680 --> 01:14:03,914 CAREERS. 1995 01:14:03,914 --> 01:14:06,517 IN 2021 SHE WAS ELECTED TO BOARD 1996 01:14:06,517 --> 01:14:07,785 OF DIRECTORS OF AMERICAN 1997 01:14:07,785 --> 01:14:12,222 ASSOCIATION FOR ADVANCEMENT OF 1998 01:14:12,222 --> 01:14:12,956 SCIENCE. 1999 01:14:12,956 --> 01:14:15,092 PRIOR TO JOINING ORWH SHE WAS 2000 01:14:15,092 --> 01:14:16,927 DEPUTY CLINICAL DIRECTOR OF 2001 01:14:16,927 --> 01:14:20,564 NATIONAL EYE INSTITUTE FOR SEVEN 2002 01:14:20,564 --> 01:14:21,632 YEARS, BOARD CERTIFIED 2003 01:14:21,632 --> 01:14:22,733 OPHTHALMOLOGIST, RESEARCH 2004 01:14:22,733 --> 01:14:24,301 INTERESTS INCLUDE AUTOIMMUNE 2005 01:14:24,301 --> 01:14:26,103 OCULAR DISEASES, AND ROLE OF SEX 2006 01:14:26,103 --> 01:14:28,439 AND GENDER IN HEALTH AND 2007 01:14:28,439 --> 01:14:30,007 DISEASE. 2008 01:14:30,007 --> 01:14:30,607 SHE'S AUTHOR OF MORE THAN 120 2009 01:14:30,607 --> 01:14:39,583 SIGN SCIENTIFIC PUBLICATIONS, 2010 01:14:39,583 --> 01:14:40,484 JOURNAL ARTICLES, BOOK CHAPTERS, 2011 01:14:40,484 --> 01:14:41,785 DEGREES FROM JOHNS HOPKINS AND 2012 01:14:41,785 --> 01:14:43,086 MEDICAL DEGREE FROM HOWARD 2013 01:14:43,086 --> 01:14:45,956 COLLEGE UNIVERSITY OF MEDICINE, 2014 01:14:45,956 --> 01:14:46,723 RESIDENCY IN OPHTHALMOLOGY 2015 01:14:46,723 --> 01:14:48,358 MEDICAL COLLEGE OF VIRGINIA, 2016 01:14:48,358 --> 01:14:49,560 FELLOWSHIP TRAINING IN CORNEA 2017 01:14:49,560 --> 01:14:51,862 AND EXTERNAL DISEASE AT THE 2018 01:14:51,862 --> 01:14:59,403 WILMER EYE INSTITUTE AT JOHNS 2019 01:14:59,403 --> 01:15:00,504 HOPKINS HOSPITAL, AND NATIONAL 2020 01:15:00,504 --> 01:15:01,271 EYE INSTITUTES. 2021 01:15:01,271 --> 01:15:04,041 IN ADDITION TO HER AWARDS IN 2022 01:15:04,041 --> 01:15:07,511 OPHTHALMOLOGY SHE IN 2015 WAS 2023 01:15:07,511 --> 01:15:09,179 AWARDED AMERICAN MEDICAL WOMEN'S 2024 01:15:09,179 --> 01:15:11,148 ASSOCIATION WALLACE WOMEN'S 2025 01:15:11,148 --> 01:15:12,316 HEALTH AWARD, AND WINGER AWARD 2026 01:15:12,316 --> 01:15:14,084 FOR EXCELLENCE IN PUBLIC 2027 01:15:14,084 --> 01:15:14,451 SERVICE. 2028 01:15:14,451 --> 01:15:21,124 SHE WAS GRANTED BERNADINE HEALEY 2029 01:15:21,124 --> 01:15:23,060 AWARD IN 2016, HONOR REFOR 2030 01:15:23,060 --> 01:15:25,462 WOMEN'S DAY RED DRESS AWARDS, 2031 01:15:25,462 --> 01:15:26,797 AMERICAN MEDICAL ASSOCIATION DR. 2032 01:15:26,797 --> 01:15:29,299 NATHAN DAVIS AWARDS FOR 2033 01:15:29,299 --> 01:15:30,300 OUTSTANDING GOVERNMENT SERVICE 2034 01:15:30,300 --> 01:15:31,802 IN 2017. 2035 01:15:31,802 --> 01:15:34,338 A VERY PRESTIGIOUS AWARD. 2036 01:15:34,338 --> 01:15:36,740 IN 2023 RECEIVED AMERICAN 2037 01:15:36,740 --> 01:15:39,142 MEDICAL WOMEN'S ASSOCIATION 2038 01:15:39,142 --> 01:15:39,910 PRESIDENTIAL AWARD. 2039 01:15:39,910 --> 01:15:40,911 JANINE, WE APPRECIATE YOU TAKING 2040 01:15:40,911 --> 01:15:43,747 THE TIME TO JOIN US TO LISTEN TO 2041 01:15:43,747 --> 01:15:45,382 SOME PREVIOUS PRESENTATIONS AND 2042 01:15:45,382 --> 01:15:47,017 TO SHARE YOUR INFORMATION BOTH 2043 01:15:47,017 --> 01:15:50,721 FROM THE OFFICE OF RESEARCH ON 2044 01:15:50,721 --> 01:15:54,258 WOMEN'S HEALTH AND FIRST LADY'S 2045 01:15:54,258 --> 01:15:55,125 INITIATIVE ON WOMEN'S HEALTH. 2046 01:15:55,125 --> 01:15:57,995 >> THANK YOU, DR. POWELL, FOR 2047 01:15:57,995 --> 01:15:59,062 THAT INCREDIBLE GRACIOUS 2048 01:15:59,062 --> 01:16:00,264 INTRODUCTION AND MY APOLOGIES 2049 01:16:00,264 --> 01:16:05,102 FOR NOT BEING THERE IN PERSON. 2050 01:16:05,102 --> 01:16:06,503 I HAVE REALLY LEARNED A LOT FROM 2051 01:16:06,503 --> 01:16:07,571 THE PRESENTATIONS THAT HAVE 2052 01:16:07,571 --> 01:16:11,408 ALREADY OCCURRED AND WANT TO 2053 01:16:11,408 --> 01:16:14,411 THANK DR. LIONS AND MS. MITCHELL 2054 01:16:14,411 --> 01:16:16,280 FOR THEIR PERSPECTIVES AND I 2055 01:16:16,280 --> 01:16:21,652 WANT TO ACKNOWLEDGE THEM ALSO, 2056 01:16:21,652 --> 01:16:24,154 DR. BALACHOVA, AS THE EXEC SEC 2057 01:16:24,154 --> 01:16:24,721 OF THIS GROUP. 2058 01:16:24,721 --> 01:16:27,991 ARE YOU GOING TO SHARE MY 2059 01:16:27,991 --> 01:16:29,626 SLIDES, TRISH? 2060 01:16:29,626 --> 01:16:31,361 DO YOU HAVE THOSE TEED UP TO 2061 01:16:31,361 --> 01:16:34,464 PRESENT OR DO YOU NEED ME TO DO 2062 01:16:34,464 --> 01:16:34,731 THAT? 2063 01:16:34,731 --> 01:16:35,432 >> OKAY, SLIDES UP. 2064 01:16:35,432 --> 01:16:37,501 DO WE WANT TO -- WE CAN IF YOU 2065 01:16:37,501 --> 01:16:38,001 WANT. 2066 01:16:38,001 --> 01:16:40,571 WE CAN MOVE YOUR SLIDES BUT IF 2067 01:16:40,571 --> 01:16:41,004 YOU WISH -- 2068 01:16:41,004 --> 01:16:44,007 >> YEAH, THAT WOULD BE GREAT. 2069 01:16:44,007 --> 01:16:44,908 >> YOU WANT US? 2070 01:16:44,908 --> 01:16:46,276 >> YES, THANK YOU SO MUCH. 2071 01:16:46,276 --> 01:16:52,482 AT THAT TIMIAN -- TATIANA, THEY 2072 01:16:52,482 --> 01:16:53,717 ARE SHOWING NOW. 2073 01:16:53,717 --> 01:16:54,484 YOU'RE SEEING THEM, RIGHT? 2074 01:16:54,484 --> 01:16:55,786 >> WE CAN SEE THEM. 2075 01:16:55,786 --> 01:16:56,453 >> THANK YOU SO MUCH. 2076 01:16:56,453 --> 01:16:57,754 NEXT SLIDE PLEASE. 2077 01:16:57,754 --> 01:16:59,389 I'M GOING TO TALK ABOUT THE 2078 01:16:59,389 --> 01:17:00,824 OFFICE OF RESEARCH ON WOMEN'S 2079 01:17:00,824 --> 01:17:02,659 HEALTH AND NEW WHITE HOUSE 2080 01:17:02,659 --> 01:17:06,530 INITIATIVE ON WOMEN'S HEALTH 2081 01:17:06,530 --> 01:17:06,797 RESEARCH. 2082 01:17:06,797 --> 01:17:09,566 NEXT. 2083 01:17:09,566 --> 01:17:11,134 CLICK AGAIN FOR ME. 2084 01:17:11,134 --> 01:17:15,172 I WANT TO HIGHLIGHT THIS DATA 2085 01:17:15,172 --> 01:17:16,807 FROM BEFORE THE PANDEMIC, 2086 01:17:16,807 --> 01:17:18,842 2003-2018, WHAT WE'RE LOOKING AT 2087 01:17:18,842 --> 01:17:26,383 HERE IS ALCOHOL-INVOLVED SUICIDE 2088 01:17:26,383 --> 01:17:28,552 RATES INCREASED FOR ALL WOMEN 2089 01:17:28,552 --> 01:17:33,490 OVER 18 AND FOR MEN BETWEEN 35- 2090 01:17:33,490 --> 01:17:34,925 64 PRIOR TO THE PANDEMIC. 2091 01:17:34,925 --> 01:17:36,126 THIS DATA IS REGARDING WHAT 2092 01:17:36,126 --> 01:17:37,661 HAPPENED TO AVERAGE NUMBER OF 2093 01:17:37,661 --> 01:17:40,430 DRINKS OF ALCOHOL PER DAY, PER 2094 01:17:40,430 --> 01:17:43,033 MONTH, OVER THE PERIOD OF THE 2095 01:17:43,033 --> 01:17:43,900 PANDEMIC. 2096 01:17:43,900 --> 01:17:45,902 FOR THE DARK LINE WE SEE THE 2097 01:17:45,902 --> 01:17:47,404 NUMBER OF AVERAGE DRINKS GOING 2098 01:17:47,404 --> 01:17:49,506 DOWN FOR MALES, WE SEE A SLIGHT 2099 01:17:49,506 --> 01:17:54,745 INCREASE FOR FEMALES. 2100 01:17:54,745 --> 01:17:54,945 NEXT. 2101 01:17:54,945 --> 01:17:56,747 THIS IS CDC DATA AROUND DEATHS 2102 01:17:56,747 --> 01:17:58,615 RELATED TO EXCESSIVE ALCOHOL 2103 01:17:58,615 --> 01:17:58,915 USE. 2104 01:17:58,915 --> 01:18:00,917 SO I'VE TALKED ABOUT 2105 01:18:00,917 --> 01:18:02,019 ALCOHOL-INVOLVED SUICIDE BEFORE 2106 01:18:02,019 --> 01:18:02,986 THE PANDEMIC. 2107 01:18:02,986 --> 01:18:04,755 HOW MUCH ALCOHOL IS BEING 2108 01:18:04,755 --> 01:18:07,791 CONSUMED DURING THE PANDEMIC. 2109 01:18:07,791 --> 01:18:09,026 AND NOW LOOKING ACROSS 2110 01:18:09,026 --> 01:18:11,962 ENCOMPASSING PART OF THE 2111 01:18:11,962 --> 01:18:14,698 PANDEMIC WE SEE A 34.7% INCREASE 2112 01:18:14,698 --> 01:18:18,135 IN DEATHS RELATED TO EXCESSIVE 2113 01:18:18,135 --> 01:18:21,171 ALCOHOL FOR FEMALES AND 27% 2114 01:18:21,171 --> 01:18:22,172 INCREASE FOR MALES. 2115 01:18:22,172 --> 01:18:24,241 I AS A SCIENTIST AND PHYSICIAN, 2116 01:18:24,241 --> 01:18:26,977 I ALWAYS WANT TO START WITH THE 2117 01:18:26,977 --> 01:18:29,312 DATA, BUT I ALSO APPRECIATE THAT 2118 01:18:29,312 --> 01:18:31,281 THERE ARE PEOPLE AND FAMILIES 2119 01:18:31,281 --> 01:18:35,752 AND STORIES BEHIND THIS DATA. 2120 01:18:35,752 --> 01:18:36,887 NEXT. 2121 01:18:36,887 --> 01:18:39,589 AND REGARDING THAT WE'VE HEARD 2122 01:18:39,589 --> 01:18:42,092 ALREADY THAT THERE ARE CONCERNS 2123 01:18:42,092 --> 01:18:44,961 WOMEN HAVE ABOUT ACCESSING CARE. 2124 01:18:44,961 --> 01:18:50,634 I HAVE QUOTES FROM DR. ROACH, AN 2125 01:18:50,634 --> 01:18:51,968 NIAAA COLLEAGUE WHO WE WORKED 2126 01:18:51,968 --> 01:18:54,471 WITH FOR MANY YEARS, WE KNOW 2127 01:18:54,471 --> 01:18:55,872 COMPARED TO MEN WOMEN ARE LESS 2128 01:18:55,872 --> 01:19:00,277 LIKELY TO BE OBTAIN TREATMENT, 2129 01:19:00,277 --> 01:19:02,212 MORE LIKELY TO HAVE ADDITIONAL 2130 01:19:02,212 --> 01:19:03,914 COMORBID CONDITIONS, MORE LIKELY 2131 01:19:03,914 --> 01:19:05,649 TO REMAIN IN TREATMENT FOR 2132 01:19:05,649 --> 01:19:08,618 SHORTER DURATIONS, THAT THESE 2133 01:19:08,618 --> 01:19:11,555 DISPARITIES DIFFER FOR 2134 01:19:11,555 --> 01:19:14,958 POPULATIONS AND STARKER FOR 2135 01:19:14,958 --> 01:19:18,562 BLACK AMERICANS, AMERICAN INDIAN 2136 01:19:18,562 --> 01:19:20,430 ALASKA NATIVE AND LATINA WOMEN. 2137 01:19:20,430 --> 01:19:22,599 BY SOME ESTIMATES BLACK AND 2138 01:19:22,599 --> 01:19:24,901 LATINA WOMEN HAVE APPROXIMATELY 2139 01:19:24,901 --> 01:19:27,003 ONE-QUARTER THE ODDS OF 2140 01:19:27,003 --> 01:19:28,205 OBTAINING ALCOHOL TREATMENT 2141 01:19:28,205 --> 01:19:28,605 SERVICES. 2142 01:19:28,605 --> 01:19:32,476 SO WE DO HAVE WORK TO DO AS 2143 01:19:32,476 --> 01:19:34,111 KATHY MITCHELL HIGHLIGHTED. 2144 01:19:34,111 --> 01:19:35,779 NEXT SLIDE. 2145 01:19:35,779 --> 01:19:37,414 IN ADDITION, THERE ARE SPECIFIC 2146 01:19:37,414 --> 01:19:39,182 CONCERNS THAT WOMEN HAVE, THAT 2147 01:19:39,182 --> 01:19:40,717 ARE DIFFERENT THAN OTHERS. 2148 01:19:40,717 --> 01:19:45,088 AND THAT IS AROUND STIGMA. 2149 01:19:45,088 --> 01:19:47,157 FOR BLACK, INDIGENOUS, PEOPLE OF 2150 01:19:47,157 --> 01:19:49,226 COLOR, THE CONCERNS ABOUT 2151 01:19:49,226 --> 01:19:49,860 EXPERIENCING DISCRIMINATION IN 2152 01:19:49,860 --> 01:19:56,600 HEALTH CARE WHICH HAVE BEEN 2153 01:19:56,600 --> 01:19:58,034 VALIDATED WITH DATA AND STIGMA 2154 01:19:58,034 --> 01:20:00,103 POSE BARRIERS TO WOMEN SEEKING 2155 01:20:00,103 --> 01:20:00,537 CARE. 2156 01:20:00,537 --> 01:20:02,706 WOMEN OFTEN AVOID REPORTING 2157 01:20:02,706 --> 01:20:03,540 THEIR PROBLEMS WITH SUBSTANCE 2158 01:20:03,540 --> 01:20:05,175 USE TO HEALTH CARE PROVIDERS 2159 01:20:05,175 --> 01:20:06,810 BECAUSE THEY FEAR BEING LABELED, 2160 01:20:06,810 --> 01:20:09,513 AS WE HEARD, AND POORLY TREATED 2161 01:20:09,513 --> 01:20:10,814 BY PROVIDERS AND OFTEN FEAR 2162 01:20:10,814 --> 01:20:14,417 HAVING CHILDREN TAKEN AWAY FROM 2163 01:20:14,417 --> 01:20:14,618 THEM. 2164 01:20:14,618 --> 01:20:16,086 THESE ARE SPECIFIC CONCERNS 2165 01:20:16,086 --> 01:20:20,557 WOMEN HAVE AND WE NEED TARGETED 2166 01:20:20,557 --> 01:20:23,093 INTERVENTIONS THAT ADDRESS THESE 2167 01:20:23,093 --> 01:20:23,994 SPECIFIC CONCERNS. 2168 01:20:23,994 --> 01:20:24,294 NEXT. 2169 01:20:24,294 --> 01:20:26,596 ONE OF THE REASONS THAT WE NEED 2170 01:20:26,596 --> 01:20:29,533 THAT IN ADDITION TO PROVIDING 2171 01:20:29,533 --> 01:20:31,067 SEX AND GENDER-INFORMED CARE, 2172 01:20:31,067 --> 01:20:32,903 CARE TAILORED TO THAT PERSON, 2173 01:20:32,903 --> 01:20:34,671 THAT INDIVIDUAL PATIENT, IS 2174 01:20:34,671 --> 01:20:38,308 BECAUSE WE HAVE A PROBLEM IN OUR 2175 01:20:38,308 --> 01:20:40,577 COUNTRY WITH MATERNAL MORTALITY. 2176 01:20:40,577 --> 01:20:43,647 THESE ARE TRENDS IN DEATHS PER 2177 01:20:43,647 --> 01:20:46,183 100,000 LIVE BIRTHS, FROM 1990 2178 01:20:46,183 --> 01:20:49,352 TO 2020, ALL OF THOSE GRAY LINES 2179 01:20:49,352 --> 01:20:51,087 ARE HIGH-INCOME COUNTRIES, SO 2180 01:20:51,087 --> 01:20:52,956 RED LINE IS UNITED STATES, OUR 2181 01:20:52,956 --> 01:20:56,159 RATES ARE GOING UP IN A VERY 2182 01:20:56,159 --> 01:20:57,260 DISTURBING WAY. 2183 01:20:57,260 --> 01:20:59,763 AND IF YOU DISAGGREGATE DATA BY 2184 01:20:59,763 --> 01:21:00,864 RACE/ETHNICITY, THE HIGHEST 2185 01:21:00,864 --> 01:21:04,367 RATES HERE ARE FOR BLACK WOMEN, 2186 01:21:04,367 --> 01:21:05,468 AMERICAN INDIAN AND ALASKA 2187 01:21:05,468 --> 01:21:07,737 NATIVE WOMEN NOT INCLUDED IN 2188 01:21:07,737 --> 01:21:09,272 THIS ANALYSIS, THEIR RATES ARE 2189 01:21:09,272 --> 01:21:10,373 EVEN HIGHER. 2190 01:21:10,373 --> 01:21:12,008 THERE'S CLEARLY A CHALLENGE 2191 01:21:12,008 --> 01:21:13,677 AROUND REPRODUCTIVE AGE WOMEN 2192 01:21:13,677 --> 01:21:18,815 AND THEIR HEALTH, THAT IS BEING 2193 01:21:18,815 --> 01:21:20,250 TRANSLATED INTO MATERNAL 2194 01:21:20,250 --> 01:21:20,884 MORTALITY, THAT IS UNACCEPTABLE 2195 01:21:20,884 --> 01:21:21,685 IN THE UNITED STATES. 2196 01:21:21,685 --> 01:21:25,055 WHEN WE LOOK AT HOW WOMEN DIE 2197 01:21:25,055 --> 01:21:27,257 RELATED TO PREGNANCY, WE SEE 2198 01:21:27,257 --> 01:21:30,760 THAT THEY DIE FROM DIFFERENT 2199 01:21:30,760 --> 01:21:32,229 CAUSES, BUT BETWEEN DIFFERENT 2200 01:21:32,229 --> 01:21:33,496 TIMES OF PREGNANCY, BUT WE ALSO 2201 01:21:33,496 --> 01:21:34,931 WANT TO SEE WHEN THEY DIE IN 2202 01:21:34,931 --> 01:21:35,799 TERMS OF TIMING. 2203 01:21:35,799 --> 01:21:37,868 IS IT DURING THE PREGNANCY, IS 2204 01:21:37,868 --> 01:21:40,203 IT DURING THE DELIVERY, AND I'M 2205 01:21:40,203 --> 01:21:42,906 HIGHLIGHTING OVER HALF OF THE 2206 01:21:42,906 --> 01:21:44,207 DEATHS OCCUR AFTER DELIVERY. 2207 01:21:44,207 --> 01:21:46,276 THAT'S NOT WHAT PEOPLE NORMALLY 2208 01:21:46,276 --> 01:21:47,043 THINK ABOUT. 2209 01:21:47,043 --> 01:21:49,012 IT'S NOT JUST DURING THE 2210 01:21:49,012 --> 01:21:51,648 PREGNANCY AND DURING THE 2211 01:21:51,648 --> 01:21:51,982 DELIVERY. 2212 01:21:51,982 --> 01:21:56,553 THIS IS ONE TO SIX DAYS 2213 01:21:56,553 --> 01:21:59,189 POSTPARTUM TO A YEAR POSTPARTUM, 2214 01:21:59,189 --> 01:22:00,056 OVER HALF. 2215 01:22:00,056 --> 01:22:01,925 WE NEED TO ADDRESS THIS 2216 01:22:01,925 --> 01:22:02,292 COMPREHENSIVELY. 2217 01:22:02,292 --> 01:22:04,127 IT'S WHY WE DO WHAT WE DO AT 2218 01:22:04,127 --> 01:22:04,361 ORWH. 2219 01:22:04,361 --> 01:22:08,265 I WANTED TO TELL YOU ABOUT OUR 2220 01:22:08,265 --> 01:22:08,798 HISTORY. 2221 01:22:08,798 --> 01:22:09,933 JUST A WHIRLWIND HERE, THESE ARE 2222 01:22:09,933 --> 01:22:13,203 SOME OF THE MAJOR PROGRAMS AND 2223 01:22:13,203 --> 01:22:15,272 EFFORTS WE'VE UNDERTAKEN, AND I 2224 01:22:15,272 --> 01:22:16,940 WILL TALK TO YOU, AND GIVE 2225 01:22:16,940 --> 01:22:18,975 EXAMPLES ALONG THE WAY. 2226 01:22:18,975 --> 01:22:21,945 WE WERE FOUNDED BECAUSE WOMEN 2227 01:22:21,945 --> 01:22:24,014 WERE NOT BEING INCLUDED 2228 01:22:24,014 --> 01:22:25,582 ROUTINELY IN NIH-SUPPORTED 2229 01:22:25,582 --> 01:22:28,752 CLINICAL RESEARCH, IN 1990, THE 2230 01:22:28,752 --> 01:22:30,020 FINDINGS FROM STUDIES WERE BEING 2231 01:22:30,020 --> 01:22:30,820 APPLIED TO WOMEN. 2232 01:22:30,820 --> 01:22:34,090 WE DIDN'T KNOW AT THAT TIME THAT 2233 01:22:34,090 --> 01:22:36,393 WOMEN AND MEN DIFFER IN MANY 2234 01:22:36,393 --> 01:22:38,361 WAYS BEYOND REPRODUCTIVE ORGANS. 2235 01:22:38,361 --> 01:22:39,329 NEXT SLIDE PLEASE. 2236 01:22:39,329 --> 01:22:41,865 SO TODAY OVER HALF OF THE 2237 01:22:41,865 --> 01:22:42,666 PARTICIPANTS OF NIH-SUPPORTED 2238 01:22:42,666 --> 01:22:44,267 CLINICAL RESEARCH ARE WOMEN. 2239 01:22:44,267 --> 01:22:45,802 AND OUR GOAL HERE, OUR MISSION, 2240 01:22:45,802 --> 01:22:48,405 IS TO EXPAND WOMEN'S HEALTH 2241 01:22:48,405 --> 01:22:49,306 RESEARCH, MAKE SURE THAT 2242 01:22:49,306 --> 01:22:50,206 UNDERREPRESENTED GROUPS AND 2243 01:22:50,206 --> 01:22:53,243 WOMEN ARE INCLUDED IN THAT 2244 01:22:53,243 --> 01:22:54,377 RESEARCH, AND PROMOTE CAREER 2245 01:22:54,377 --> 01:22:58,348 ADVANCEMENT OF WOMEN IN SCIENCE, 2246 01:22:58,348 --> 01:22:59,282 TECHNOLOGY, ENGINEERING, 2247 01:22:59,282 --> 01:22:59,916 MEDICINE, MATHEMATICS. 2248 01:22:59,916 --> 01:23:03,586 BECAUSE WE IMAGINE A WORLD WHERE 2249 01:23:03,586 --> 01:23:05,221 CONSIDERING WOMEN'S HEALTH 2250 01:23:05,221 --> 01:23:06,756 ACROSS A BIOMEDICAL SPECTRUM IS 2251 01:23:06,756 --> 01:23:08,158 AS AUTOMATIC AS LOOKING BOTH 2252 01:23:08,158 --> 01:23:09,592 WAYS BEFORE YOU CROSS THE 2253 01:23:09,592 --> 01:23:09,960 STREET. 2254 01:23:09,960 --> 01:23:13,096 WE IMAGINE A WORLD WHERE EVERY 2255 01:23:13,096 --> 01:23:14,664 WOMAN RECEIVES EVIDENCE-BASED 2256 01:23:14,664 --> 01:23:17,067 TREATMENT, TAILORED TO HER OWN 2257 01:23:17,067 --> 01:23:18,268 CIRCUMSTANCES, GOALS, NEEDS, AND 2258 01:23:18,268 --> 01:23:23,640 MANUAL -- IMAGINE A WOMEN WHERE 2259 01:23:23,640 --> 01:23:25,175 ALL WOMEN REACH FULL POTENTIAL. 2260 01:23:25,175 --> 01:23:28,645 INCLUDE 2261 01:23:28,645 --> 01:23:29,746 INCLUDE-- I MENTION INCLUSION, 2262 01:23:29,746 --> 01:23:31,614 IT'S IN OUR DNA, THAT'S WHY WE 2263 01:23:31,614 --> 01:23:34,050 WERE FOUNDED. 2264 01:23:34,050 --> 01:23:35,785 WHEN THE 21ST CENTURY CURES ACT 2265 01:23:35,785 --> 01:23:37,287 WENT INTO EFFECT LEGISLATING 2266 01:23:37,287 --> 01:23:40,590 PEOPLE OF ALL AGES ALSO MUST BE 2267 01:23:40,590 --> 01:23:42,258 INCLUDED IN NIH-SUPPORTED 2268 01:23:42,258 --> 01:23:44,327 CLINICAL RESEARCH, AND CREATED A 2269 01:23:44,327 --> 01:23:46,196 PATH TO INCLUDE PREGNANT AND 2270 01:23:46,196 --> 01:23:47,831 LACTATING PEOPLE IN RESEARCH 2271 01:23:47,831 --> 01:23:49,165 BECAUSE IF WE DON'T INCLUDE 2272 01:23:49,165 --> 01:23:53,770 INDIVIDUALS WHO ARE PREGNANCY 2273 01:23:53,770 --> 01:23:55,505 AND LACTATING WE DON'T HAVE 2274 01:23:55,505 --> 01:23:56,506 EVIDENCE TO ADVISE THEM WHEN 2275 01:23:56,506 --> 01:23:59,042 THEY ARE PREGNANT AND LACTATING 2276 01:23:59,042 --> 01:24:00,543 REGARDING SAFETY OR EFFICACY OF 2277 01:24:00,543 --> 01:24:01,511 INTERVENTIONS AND MEDICATIONS 2278 01:24:01,511 --> 01:24:04,514 THAT THEY NEED TO TAKE. 2279 01:24:04,514 --> 01:24:06,583 IT ALSO REQUIRED THAT NIH DEFINE 2280 01:24:06,583 --> 01:24:09,419 PHASE 3 CLINICAL TRIALS OF THOSE 2281 01:24:09,419 --> 01:24:10,520 BIG STUDIES, REPORT RESULTS BY 2282 01:24:10,520 --> 01:24:18,128 SEX AND GENDER RACE AND 2283 01:24:18,128 --> 01:24:21,031 ETHNICITY INTO 2284 01:24:21,031 --> 01:24:22,232 clinicaltrials.gov. 2285 01:24:22,232 --> 01:24:23,967 WE KNOW INSIGHTED GARNERED BY 2286 01:24:23,967 --> 01:24:25,835 INCLUDING PEOPLE AFFECTED BY 2287 01:24:25,835 --> 01:24:27,804 DISEASES IN STUDIES HELPING US 2288 01:24:27,804 --> 01:24:28,705 REHANS REPRODUCIBILITY, OUR 2289 01:24:28,705 --> 01:24:30,673 CONFIDENCE IN THESE STUDIES AS 2290 01:24:30,673 --> 01:24:32,075 WELL AS GENERALIZABILITY OF 2291 01:24:32,075 --> 01:24:33,843 THOSE CLINICAL STUDY FINDINGS TO 2292 01:24:33,843 --> 01:24:35,278 EVERYONE AFFECTED BY THE DISEASE 2293 01:24:35,278 --> 01:24:36,479 OR UNDERSTAND ANY DIFFERENCES 2294 01:24:36,479 --> 01:24:39,649 THAT ARE CLINICALLY IMPORTANT. 2295 01:24:39,649 --> 01:24:39,949 NEXT. 2296 01:24:39,949 --> 01:24:42,385 SO, WHAT DO WE DO AT NIH? 2297 01:24:42,385 --> 01:24:43,787 WE HAVE AN NIH-WIDE STRATEGIC 2298 01:24:43,787 --> 01:24:44,020 PLAN. 2299 01:24:44,020 --> 01:24:45,321 I'M EXCITED TO SHARE WITH YOU 2300 01:24:45,321 --> 01:24:47,090 THE NEW PLAN WILL BE COMING OUT 2301 01:24:47,090 --> 01:24:47,857 NEXT WEEK. 2302 01:24:47,857 --> 01:24:50,493 CLICK AGAIN. 2303 01:24:50,493 --> 01:24:52,796 WE WORK WITH 27 INSTITUTES AND 2304 01:24:52,796 --> 01:24:54,330 CENTERS AT NIH INCLUDING NIAAA 2305 01:24:54,330 --> 01:24:57,300 AND MANY OFFICES IN PARTNERSHIP. 2306 01:24:57,300 --> 01:24:58,134 NEXT. 2307 01:24:58,134 --> 01:25:00,036 AND WE WORK THROUGH DRIVING 2308 01:25:00,036 --> 01:25:01,004 SYNERGISTIC RESEARCH PRIORITIES 2309 01:25:01,004 --> 01:25:03,640 TO ACHIEVE THAT NIH VISION THAT 2310 01:25:03,640 --> 01:25:06,609 I JUST MENTIONED TO YOU, THROUGH 2311 01:25:06,609 --> 01:25:08,044 WORKING GROUPS, FUNDING 2312 01:25:08,044 --> 01:25:10,113 OPPORTUNITIES, WORKSHOPS, PRIOR 2313 01:25:10,113 --> 01:25:11,081 SETTING. 2314 01:25:11,081 --> 01:25:11,848 NEXT. 2315 01:25:11,848 --> 01:25:13,283 AND WE HAVE SIGNATURE RESEARCH 2316 01:25:13,283 --> 01:25:17,053 PROGRAMS THAT WE LEAD WITH THE 2317 01:25:17,053 --> 01:25:18,288 INSTITUTES AND CENTERS, CAN YOU 2318 01:25:18,288 --> 01:25:22,358 SEE FOR EACH THE NUMBER OF 2319 01:25:22,358 --> 01:25:23,893 INSTITUTES, CENTERS, AND 2320 01:25:23,893 --> 01:25:26,096 OFFICES, ICOS TO PARTNER WITH TO 2321 01:25:26,096 --> 01:25:27,464 LEAD THESE COMPLEMENTORY TO 2322 01:25:27,464 --> 01:25:30,133 EFFORTS THE I.C.s UNDERTAKE. 2323 01:25:30,133 --> 01:25:32,335 OUR BIRCWH PROGRAM IS A CAREER 2324 01:25:32,335 --> 01:25:33,937 DEVELOPMENT PROGRAM, PURPOSE OF 2325 01:25:33,937 --> 01:25:36,706 WHICH IS TO EXPAND THE CADRE OF 2326 01:25:36,706 --> 01:25:37,941 PEOPLE DOING WOMEN'S HEALTH 2327 01:25:37,941 --> 01:25:40,543 RESEARCH AROUND THE COUNTRY. 2328 01:25:40,543 --> 01:25:42,645 THE SCORE PROGRAM, SEX 2329 01:25:42,645 --> 01:25:43,379 DIFFERENCES CENTERS OF 2330 01:25:43,379 --> 01:25:44,147 EXCELLENCE. 2331 01:25:44,147 --> 01:25:45,915 AND WE HAVE ADMINISTRATIVE 2332 01:25:45,915 --> 01:25:48,218 SUPPLEMENTS WHERE WE PROVIDE 2333 01:25:48,218 --> 01:25:48,985 ADDITIONAL FUNDING TO 2334 01:25:48,985 --> 01:25:49,752 INVESTIGATORS ALREADY FUNDED TO 2335 01:25:49,752 --> 01:25:52,489 BE ABLE TO LOOK AT UNDERSTUDIED 2336 01:25:52,489 --> 01:25:55,358 POPULATIONS OR TO ADD SEX AND 2337 01:25:55,358 --> 01:25:56,659 GENDER. 2338 01:25:56,659 --> 01:26:00,296 WE HAVE LED NIH'S ONLY R01 2339 01:26:00,296 --> 01:26:01,931 FOCUSED ON INTERSECTION OF SEX 2340 01:26:01,931 --> 01:26:03,933 AND GENDER, BIOLOGY AND SOCIAL 2341 01:26:03,933 --> 01:26:05,768 FACTORS, ON HEALTH AND DISEASE, 2342 01:26:05,768 --> 01:26:10,140 AND HAVE THE NEW R21 AND NEW R01 2343 01:26:10,140 --> 01:26:13,209 LOOKING AT CHRONIC CONDITIONS WE 2344 01:26:13,209 --> 01:26:14,077 KNOW ARE UNDERSTUDIED AMONG 2345 01:26:14,077 --> 01:26:14,644 WOMEN. 2346 01:26:14,644 --> 01:26:19,582 NEXT SLIDE PLEASE. 2347 01:26:19,582 --> 01:26:20,550 MENTIONED IN THE TIMELINE SEX AS 2348 01:26:20,550 --> 01:26:22,085 A BIOLOGICAL VARIABLE POLICY, 2349 01:26:22,085 --> 01:26:24,587 AND BASICALLY THAT POLICY WENT 2350 01:26:24,587 --> 01:26:26,456 INTO EFFECT IN 2016, AND DR. 2351 01:26:26,456 --> 01:26:28,491 COLLINS AND I PUBLISHED A PAPER 2352 01:26:28,491 --> 01:26:31,928 IN 2014 LEADING UP TO THAT 2353 01:26:31,928 --> 01:26:33,963 POLICY WHERE WE ARTICULATED NIH 2354 01:26:33,963 --> 01:26:34,898 EXPECT IT'S SEX AS A BIOLOGICAL 2355 01:26:34,898 --> 01:26:38,101 VARIABLE WILL BE FACTORED INTO 2356 01:26:38,101 --> 01:26:40,136 RESEARCH DESIGNS, ANALYSIS AND 2357 01:26:40,136 --> 01:26:42,205 REPORTING, FOR VERTEBRATE ANIMAL 2358 01:26:42,205 --> 01:26:44,507 AND HUMAN STUDIES AND STRONG 2359 01:26:44,507 --> 01:26:46,709 JUSTIFICATION FROM THE 2360 01:26:46,709 --> 01:26:47,911 SCIENTIFIC LITERATURE OR 2361 01:26:47,911 --> 01:26:49,012 RELEVANT CONSIDERATION BE 2362 01:26:49,012 --> 01:26:50,647 PROVIDED FOR SINGLE SEX STUDIES, 2363 01:26:50,647 --> 01:26:53,583 THIS IS BECAUSE MANY STUDIES 2364 01:26:53,583 --> 01:26:55,118 PRE-CLINICAL AND CLINICAL WERE 2365 01:26:55,118 --> 01:26:57,220 INCLUDING JUST MEN OR MALE 2366 01:26:57,220 --> 01:26:58,755 ANIMALS, AND SO THIS WAS 2367 01:26:58,755 --> 01:27:07,397 NECESSARY TO MOVE FORWARD. 2368 01:27:07,397 --> 01:27:07,697 NEXT. 2369 01:27:07,697 --> 01:27:10,867 WE HAVE SEEN, CLICK AGAIN, AND 2370 01:27:10,867 --> 01:27:12,302 AGAIN, OVER MANY YEARS -- ON YOU 2371 01:27:12,302 --> 01:27:14,170 LEFT YOU SEE WOMEN'S HEALTH 2372 01:27:14,170 --> 01:27:16,139 INITIATIVE, A LANDMARK STUDY 2373 01:27:16,139 --> 01:27:19,309 LOOKING AT WOMEN OLDER AGE WOMEN 2374 01:27:19,309 --> 01:27:23,780 THAT DR. BERNADINE HEALY LED AND 2375 01:27:23,780 --> 01:27:25,748 CREATED WHEN NIH DIRECTOR, STUDY 2376 01:27:25,748 --> 01:27:29,152 OF WOMEN ACROSS THE NATION, 2377 01:27:29,152 --> 01:27:35,491 DIVERSE POPULATIONS THAT THE 2378 01:27:35,491 --> 01:27:37,694 AGING INSTITUTE LEADS, HPV 2379 01:27:37,694 --> 01:27:40,663 VACCINE WHICH CAN LITERALLY 2380 01:27:40,663 --> 01:27:42,732 PREVENT CERVICAL CANCER, 2381 01:27:42,732 --> 01:27:43,933 INSTITUTION OF MENTAL HEALTH 2382 01:27:43,933 --> 01:27:48,571 RESEARCH LEADING TO THE 2383 01:27:48,571 --> 01:27:49,305 TREATMENT FOR POSTPARTUM 2384 01:27:49,305 --> 01:27:59,315 DEPRESSION AND LEADING TO THE 2385 01:27:59,315 --> 01:28:01,651 IDENTIFICATION OF JAK INHIBITORS 2386 01:28:01,651 --> 01:28:02,285 TO TREAT THESE DISEASES, PLAYING 2387 01:28:02,285 --> 01:28:03,953 A CRITICAL ROLE. 2388 01:28:03,953 --> 01:28:04,921 I MENTIONED MATERNAL MORTALITY 2389 01:28:04,921 --> 01:28:07,123 CRISIS WE'RE FACING IN THIS 2390 01:28:07,123 --> 01:28:08,291 COUNTRY. 2391 01:28:08,291 --> 01:28:11,261 AND WE BROUGHT THAT TO THEN NIH 2392 01:28:11,261 --> 01:28:12,362 DIRECTOR FRANCIS COLLINS' 2393 01:28:12,362 --> 01:28:14,564 ATTENTION, HE CREATED AND NIH 2394 01:28:14,564 --> 01:28:15,431 WIDE MATERNAL MORTALITY TASK 2395 01:28:15,431 --> 01:28:15,765 FORCE. 2396 01:28:15,765 --> 01:28:18,268 I HAVE THE PRIVILEGE TO CO-CHAIR 2397 01:28:18,268 --> 01:28:22,005 WITH NICHD DIRECTOR, AND NURSING 2398 01:28:22,005 --> 01:28:25,174 INSTITUTE DIRECTOR, AND WITH 2399 01:28:25,174 --> 01:28:27,243 CONGRESSIONAL APPROPRIATIONS 2400 01:28:27,243 --> 01:28:28,111 CREATED THE IMPLEMENTING 2401 01:28:28,111 --> 01:28:29,979 MATERNAL HEALTH AND PREGNANCY 2402 01:28:29,979 --> 01:28:31,848 OUTCOMES VISION FOR EVERYONE, 2403 01:28:31,848 --> 01:28:34,250 IMPROVE INITIATIVE. 2404 01:28:34,250 --> 01:28:35,551 THIS MULTI-COMPONENT INITIATIVE 2405 01:28:35,551 --> 01:28:38,054 INCLUDES DISSEMINATION AND 2406 01:28:38,054 --> 01:28:38,955 IMPLEMENTATION SCIENCE, 2407 01:28:38,955 --> 01:28:39,889 COMMUNITY ENGAGEMENT, TECH 2408 01:28:39,889 --> 01:28:46,929 CHALLENGES, AND IN THE CENTER, 2409 01:28:46,929 --> 01:28:48,031 THE CENTERPIECE, MATERNAL HEALTH 2410 01:28:48,031 --> 01:28:49,766 RESEARCH CENTERS OF EXCELLENCE 2411 01:28:49,766 --> 01:28:56,873 THROUGHOUT THE COUNTRY LOOK TOCK 2412 01:28:56,873 --> 01:28:57,674 ADDRESS BIOPSYCHOSOCIAL 2413 01:28:57,674 --> 01:28:58,308 CONSOLATION OF FACTORINGS TO 2414 01:28:58,308 --> 01:29:01,244 IMPROVE HEALTH OF WOMEN AND 2415 01:29:01,244 --> 01:29:02,912 ADDRESS MATERNAL MORBIDITY AND 2416 01:29:02,912 --> 01:29:03,813 MORTALITY CRISIS IN THIS 2417 01:29:03,813 --> 01:29:04,714 COUNTRY. 2418 01:29:04,714 --> 01:29:05,481 NEXT. 2419 01:29:05,481 --> 01:29:07,550 IN ADDITION, WE CREATED MATERNAL 2420 01:29:07,550 --> 01:29:09,052 MORBIDITY AND MORTALITY WEB 2421 01:29:09,052 --> 01:29:10,620 PORTAL SO INFORMATION IS IN A 2422 01:29:10,620 --> 01:29:13,256 SINGLE PLACE, PEOPLE COULD FIND 2423 01:29:13,256 --> 01:29:15,658 THAT INFORMATION AT NIH ON OUR 2424 01:29:15,658 --> 01:29:18,394 WEBSITE AND THEN IN OUR 2425 01:29:18,394 --> 01:29:22,565 UNDERSTUDIED UNDERREPRESENTED 2426 01:29:22,565 --> 01:29:24,067 AND UNDERREPORTED WOMEN 2427 01:29:24,067 --> 01:29:25,301 POPULATIONS PROGRAM INCLUDED 2428 01:29:25,301 --> 01:29:26,636 MATERNAL MORBIDITY AND MORTALITY 2429 01:29:26,636 --> 01:29:28,671 AS KEY PRIORITY, ONE EXAMPLE OF 2430 01:29:28,671 --> 01:29:30,640 A STUDY THAT'S LOOKING AT 2431 01:29:30,640 --> 01:29:33,042 OPIOIDS AND MATERNAL BRAIN 2432 01:29:33,042 --> 01:29:35,011 BEHAVIOR, EXAMINING ASSOCIATIONS 2433 01:29:35,011 --> 01:29:36,112 BETWEEN CHILDHOOD TRAUMA AND 2434 01:29:36,112 --> 01:29:39,182 VIOLENCE AND OPIOID USE 2435 01:29:39,182 --> 01:29:42,051 DISORDER, AND BRAIN CIRCUITRY 2436 01:29:42,051 --> 01:29:43,820 AND MECHANISMS AROUND PARENTING 2437 01:29:43,820 --> 01:29:45,555 BEHAVIORS, AND INFANT OUTCOMES. 2438 01:29:45,555 --> 01:29:47,623 SO JUST AN EXAMPLE OF WHEN YOU 2439 01:29:47,623 --> 01:29:49,492 FOCUS YOUR ATTENTION ON AN 2440 01:29:49,492 --> 01:29:53,296 ISSUE, AS WE DO, WE CAN ELEVATE 2441 01:29:53,296 --> 01:29:54,530 RESEARCH AND EXPAND RESEARCH IN 2442 01:29:54,530 --> 01:29:56,466 THOSE AREAS WHICH IS WHAT WE DO 2443 01:29:56,466 --> 01:29:57,467 IN COLLABORATION WITH THE 2444 01:29:57,467 --> 01:30:01,404 INSTITUTES AND CENTERS HERE AT 2445 01:30:01,404 --> 01:30:01,571 NIH. 2446 01:30:01,571 --> 01:30:01,804 NEXT. 2447 01:30:01,804 --> 01:30:03,773 WE ALSO HAVE A VARIETY OF 2448 01:30:03,773 --> 01:30:05,541 CAREERS PROGRAM SO I WANTED TO 2449 01:30:05,541 --> 01:30:11,147 JUST BRIEFLY MENTION SOME OF 2450 01:30:11,147 --> 01:30:11,347 THEM. 2451 01:30:11,347 --> 01:30:13,649 OUR REENTRY REINTEGRATION AND 2452 01:30:13,649 --> 01:30:16,519 RETRAINING SUPPLEMENTS WERE 2453 01:30:16,519 --> 01:30:19,155 EXPANDED TO INCLUDE IF A PERSON 2454 01:30:19,155 --> 01:30:21,224 IS EXPERIENCING UNSAFE WORK 2455 01:30:21,224 --> 01:30:21,991 ENVIRONMENT INCLUDING SEXUAL 2456 01:30:21,991 --> 01:30:23,059 HARASSMENT CAN GET ONE OF THESE 2457 01:30:23,059 --> 01:30:24,827 SUPPLEMENTS TO MOVE TO A SAFE 2458 01:30:24,827 --> 01:30:25,561 ENVIRONMENT. 2459 01:30:25,561 --> 01:30:28,097 AND I ALSO WANT TO HIGHLIGHT OUR 2460 01:30:28,097 --> 01:30:30,533 TWIN PROGRAM, AT HARVARD, WHICH 2461 01:30:30,533 --> 01:30:32,402 IS AN INNOVATION PROGRAM BETWEEN 2462 01:30:32,402 --> 01:30:36,339 OUR SCORE AND BIRCWH, WE'RE 2463 01:30:36,339 --> 01:30:37,206 SUPPORTING CURRICULUM 2464 01:30:37,206 --> 01:30:38,174 DEVELOPMENT FOR ENTREPRENEURSHIP 2465 01:30:38,174 --> 01:30:39,742 FOR THOSE SCHOLARS BECAUSE WE 2466 01:30:39,742 --> 01:30:41,177 NEED TO MOVE ACROSS SECTORS AND 2467 01:30:41,177 --> 01:30:42,879 NOT JUST WORK IN ACADEMIA BUT 2468 01:30:42,879 --> 01:30:47,116 ALSO IN THE PRIVATE SECTOR AS 2469 01:30:47,116 --> 01:30:48,117 WELL. 2470 01:30:48,117 --> 01:30:48,451 NEXT. 2471 01:30:48,451 --> 01:30:53,556 I AM ALSO REALLY PRIVILEGED TO 2472 01:30:53,556 --> 01:30:55,224 CO-CHAIR THE COMPASS PROGRAM, A 2473 01:30:55,224 --> 01:30:58,494 COMMON FUND EFFORT AT NIH, 2474 01:30:58,494 --> 01:31:05,835 DESIGNED TO CATALYZE THE 2475 01:31:05,835 --> 01:31:06,836 QUESTION EQUITY, STRUCTURAL 2476 01:31:06,836 --> 01:31:08,805 INTERVENTION AND DEVELOP A NEW 2477 01:31:08,805 --> 01:31:11,107 HEALTH EQUITY RESEARCH PANEL. 2478 01:31:11,107 --> 01:31:14,043 THIS IS CALLED -- THE DELTA 2479 01:31:14,043 --> 01:31:15,611 HEALTH ALLIANCE, A COMMUNITY 2480 01:31:15,611 --> 01:31:17,146 ORGANIZATION THAT'S BEING 2481 01:31:17,146 --> 01:31:19,315 DIRECTLY FUNDED BY NIH TO 2482 01:31:19,315 --> 01:31:21,617 RESEARCH WAYS TO ADDRESS 2483 01:31:21,617 --> 01:31:22,952 MISSISSIPPI'S BIRTH AND MATERNAL 2484 01:31:22,952 --> 01:31:24,253 HEALTH DISPARITIES. 2485 01:31:24,253 --> 01:31:28,191 WE PROVIDE INFORMATION FOR 2486 01:31:28,191 --> 01:31:28,958 PRE-PREGNANCY HEALTH 2487 01:31:28,958 --> 01:31:30,726 OPTIMIZATION, POSTPARTUM HEALTH 2488 01:31:30,726 --> 01:31:32,695 IMPROVEMENT IN RURAL AND LOW 2489 01:31:32,695 --> 01:31:36,332 INCOME AREAS, TRAINING FOR 2490 01:31:36,332 --> 01:31:39,268 PROVIDERS, AND ADDRESS THE 2491 01:31:39,268 --> 01:31:40,803 ECONOMIC STABILITY THAT IS 2492 01:31:40,803 --> 01:31:45,508 ACCOMPANYING THESE PROBLEMS BY 2493 01:31:45,508 --> 01:31:46,509 IMPLEMENTING MATERNAL LEAVE 2494 01:31:46,509 --> 01:31:47,276 STIPEND. 2495 01:31:47,276 --> 01:31:48,377 HERE ARE SOME CREATIVE WAYS NIH 2496 01:31:48,377 --> 01:31:50,112 IS WORKING TO ADDRESS THESE 2497 01:31:50,112 --> 01:31:52,415 CHALLENGING ISSUES. 2498 01:31:52,415 --> 01:31:52,715 NEXT SLIDE. 2499 01:31:52,715 --> 01:31:54,817 CLICK A FEW TIMES FOR ME HERE. 2500 01:31:54,817 --> 01:31:56,452 ONE MORE TIME. 2501 01:31:56,452 --> 01:31:57,787 AND ONCE MORE. 2502 01:31:57,787 --> 01:31:58,554 THANK YOU. 2503 01:31:58,554 --> 01:32:00,623 SO, GO BACK ONE SLIDE FOR ME. 2504 01:32:00,623 --> 01:32:02,058 I WANT TO HIGHLIGHT FOR YOU THAT 2505 01:32:02,058 --> 01:32:04,460 WE TAKE A LIFE COURSE 2506 01:32:04,460 --> 01:32:04,894 PERSPECTIVE. 2507 01:32:04,894 --> 01:32:06,963 THAT THE HEALTH OF WOMEN IS 2508 01:32:06,963 --> 01:32:08,498 DETERMINED BY WHAT'S HAPPENED TO 2509 01:32:08,498 --> 01:32:11,234 THEM IN THEIR CHILDHOOD, WHETHER 2510 01:32:11,234 --> 01:32:12,869 THEY HAD ADVERSE CHILDHOOD 2511 01:32:12,869 --> 01:32:13,870 EXPERIENCES, WE NEED TO TAKE 2512 01:32:13,870 --> 01:32:14,971 THAT AS A CONTINUUM. 2513 01:32:14,971 --> 01:32:16,939 IN FACT WE KNOW HEALTH OF A 2514 01:32:16,939 --> 01:32:18,374 WOMAN IS AFFECTED BY HEALTH OF 2515 01:32:18,374 --> 01:32:20,676 HER MOTHER WHEN SHE WAS PREGNANT 2516 01:32:20,676 --> 01:32:21,310 WITH HER. 2517 01:32:21,310 --> 01:32:22,745 AND WE KNOW WHAT HAPPENS WHEN A 2518 01:32:22,745 --> 01:32:25,481 WOMAN IS PREGNANT AS WE'RE 2519 01:32:25,481 --> 01:32:27,817 TALKING ABOUT TODAY CAN HAVE 2520 01:32:27,817 --> 01:32:28,885 EFFECTS FOR GENERATIONS MOVING 2521 01:32:28,885 --> 01:32:29,418 FORWARD. 2522 01:32:29,418 --> 01:32:31,420 IT'S IMPORTANT TO TAKE THAT LIFE 2523 01:32:31,420 --> 01:32:33,155 COURSE PERSPECTIVE. 2524 01:32:33,155 --> 01:32:33,356 NEXT. 2525 01:32:33,356 --> 01:32:35,024 AND OUR NEW STRATEGIC PLAN WE 2526 01:32:35,024 --> 01:32:35,892 OUTLINE THAT LIFE COURSE PER 2527 01:32:35,892 --> 01:32:40,162 SPECK ACTIVE AND -- PERSPECTIVE 2528 01:32:40,162 --> 01:32:42,798 TO CONSIDER BIOLOGICAL FACTORS 2529 01:32:42,798 --> 01:32:44,867 LIKE GENES, HORMONES, THE IMMUNE 2530 01:32:44,867 --> 01:32:47,737 SYSTEM, BUT ALSO SOCIAL AND 2531 01:32:47,737 --> 01:32:49,038 ENVIRONMENTAL FACTORS AND 2532 01:32:49,038 --> 01:32:51,207 EXPOSURES AND CONTEXT. 2533 01:32:51,207 --> 01:32:53,843 WHETHER THAT'S A TOXIC EXPOSURE 2534 01:32:53,843 --> 01:32:56,045 TO CHEMICAL OR TOXIC EXPOSURE TO 2535 01:32:56,045 --> 01:32:58,114 A TOXIC RELATIONSHIP, WHETHER 2536 01:32:58,114 --> 01:32:59,982 THAT IS ECONOMIC STABILITY AND 2537 01:32:59,982 --> 01:33:02,518 AVAILABILITY OF FRESH FRUIT AND 2538 01:33:02,518 --> 01:33:04,787 VEGETABLES OR SPACE ENVIRONMENTS 2539 01:33:04,787 --> 01:33:06,956 AND PLACES AND SPACES TO 2540 01:33:06,956 --> 01:33:10,092 EXERCISE OR WALK, ALL OF THESE 2541 01:33:10,092 --> 01:33:13,996 FACTORS AFFECT OUR HEALTH. 2542 01:33:13,996 --> 01:33:15,731 AND WITHOUT CONSIDERING THIS 2543 01:33:15,731 --> 01:33:17,700 COMPLEX CONSTELLATION OF 2544 01:33:17,700 --> 01:33:21,203 FACTORS, WE'RE ADDRESSING THESE 2545 01:33:21,203 --> 01:33:22,638 IN A PIECEMEAL FASHION AND WORK 2546 01:33:22,638 --> 01:33:25,808 ACROSS ALL INSTITUTES TO PUT 2547 01:33:25,808 --> 01:33:27,310 THAT INFORMATION TOGETHER, 2548 01:33:27,310 --> 01:33:29,312 LEVERAGE THAT INCREDIBLE CUTTING 2549 01:33:29,312 --> 01:33:31,514 EDGE SCIENCE, INTEGRATE IT, USE 2550 01:33:31,514 --> 01:33:33,049 CUTTING EDGE ANALYTIC APPROACHES 2551 01:33:33,049 --> 01:33:35,551 SO WE CAN DERIVE INSIGHTS AND 2552 01:33:35,551 --> 01:33:37,954 SEE PATTERNS AND MOVE FORWARD IN 2553 01:33:37,954 --> 01:33:39,956 ADDRESSING THOSE PATTERNS WITH 2554 01:33:39,956 --> 01:33:43,059 SPECIFIC INTERVENTIONS FOR 2555 01:33:43,059 --> 01:33:43,259 WOMEN. 2556 01:33:43,259 --> 01:33:44,527 NEXT SLIDE. 2557 01:33:44,527 --> 01:33:48,798 SO, AS I GO INTO THIS NEXT 2558 01:33:48,798 --> 01:33:50,232 SECTION, I'M HONORED TO HAVE 2559 01:33:50,232 --> 01:33:53,169 BEEN ABLE TO BE WITH DR. 2560 01:33:53,169 --> 01:33:55,271 BERTAGNOLLI AND OTHERS IN THE 2561 01:33:55,271 --> 01:33:57,673 OVAL OFFICE TO SEE THE PRESIDENT 2562 01:33:57,673 --> 01:33:59,775 SIGN THE FIRST EVER WHITE HOUSE 2563 01:33:59,775 --> 01:34:01,844 INITIATIVE ON WOMEN'S HEALTH 2564 01:34:01,844 --> 01:34:02,178 RESEARCH. 2565 01:34:02,178 --> 01:34:04,447 THIS EFFORT IS BEING CO-LED FROM 2566 01:34:04,447 --> 01:34:05,781 THE WHITE HOUSE ALONG WITH 2567 01:34:05,781 --> 01:34:07,550 OFFICE OF THE FIRST LADY THAT 2568 01:34:07,550 --> 01:34:09,819 YOU SEE STANDING THERE, AND THEY 2569 01:34:09,819 --> 01:34:11,887 HAVE AN INCREDIBLE DEDICATION 2570 01:34:11,887 --> 01:34:12,922 AND COMMITMENT TO THIS ISSUE, 2571 01:34:12,922 --> 01:34:15,958 AND WOMEN IN THIS COUNTRY. 2572 01:34:15,958 --> 01:34:17,493 NEXT SLIDE PLEASE. 2573 01:34:17,493 --> 01:34:19,028 FOLLOWING THAT IN NOVEMBER IN 2574 01:34:19,028 --> 01:34:21,330 MARCH THE PRESIDENT TOOK THE 2575 01:34:21,330 --> 01:34:26,268 NEXT STEP AND SIGNED EXECUTIVE 2576 01:34:26,268 --> 01:34:27,336 ORDER 14120, PRIORITIZING 2577 01:34:27,336 --> 01:34:29,105 INVESTMENT IN WOMEN'S HEALTH 2578 01:34:29,105 --> 01:34:31,407 RESEARCH ACROSS THE FEDERAL 2579 01:34:31,407 --> 01:34:34,010 RESEARCH PORTFOLIO, NOT JUST 2580 01:34:34,010 --> 01:34:38,147 NIH, MULTIPLE DEPARTMENTS AND 2581 01:34:38,147 --> 01:34:40,082 AGENCIES GALVANIZING RESEARCH ON 2582 01:34:40,082 --> 01:34:41,984 MID-LIFE HEALTH CHALLENGING TO 2583 01:34:41,984 --> 01:34:43,986 US ASSESS THE UNMET NEEDS TO 2584 01:34:43,986 --> 01:34:46,255 SUPPORT WOMEN'S HEALTH RESEARCH. 2585 01:34:46,255 --> 01:34:47,156 NEXT. 2586 01:34:47,156 --> 01:34:49,225 AND SO HERE ARE THE FOUR MAJOR 2587 01:34:49,225 --> 01:34:51,861 AREAS THAT I MENTIONED. 2588 01:34:51,861 --> 01:34:53,963 WE ARE WORKING ACROSS VARIOUS 2589 01:34:53,963 --> 01:34:55,464 DEPARTMENTS AND AGENCIES TO SEE 2590 01:34:55,464 --> 01:34:58,200 WHAT THOSE RESEARCH GAPS ARE, TO 2591 01:34:58,200 --> 01:35:01,704 IDENTIFY WHERE WE NEED TO 2592 01:35:01,704 --> 01:35:02,405 PRIORITIZE WOMEN'S HEALTH 2593 01:35:02,405 --> 01:35:07,076 RESEARCH TO TALK ABOUT WAYS TO 2594 01:35:07,076 --> 01:35:08,511 INTEGRATE INNOVATION TO MAKE 2595 01:35:08,511 --> 01:35:10,146 SURE DATA STANDARDS SUPPORT 2596 01:35:10,146 --> 01:35:11,781 UNDERSTANDING EFFECTS OF 2597 01:35:11,781 --> 01:35:16,385 RESEARCH FOR WOMEN AND HAVING 2598 01:35:16,385 --> 01:35:17,353 THAT INFORMATION DISAGGREGATED 2599 01:35:17,353 --> 01:35:19,889 SO RESULTS ARE PUBLISHED FOR 2600 01:35:19,889 --> 01:35:21,290 FEMALES AND MALES, WOMEN AND 2601 01:35:21,290 --> 01:35:25,361 MEN, SO WE CAN UNDERSTAND WHERE 2602 01:35:25,361 --> 01:35:27,196 THERE ARE CLINICALLY IMPORTANT 2603 01:35:27,196 --> 01:35:29,632 DIFFERENCES IN EFFECTIVENESS AND 2604 01:35:29,632 --> 01:35:31,834 PERHAPS IN SAFETY OF 2605 01:35:31,834 --> 01:35:32,168 INTERVENTIONS. 2606 01:35:32,168 --> 01:35:33,135 NEXT SLIDE PLEASE. 2607 01:35:33,135 --> 01:35:35,104 THESE ARE THE AGENCIES AND 2608 01:35:35,104 --> 01:35:37,039 DEPARTMENTS THAT WE'RE WORKING 2609 01:35:37,039 --> 01:35:39,775 ACROSS, 11 FEDERAL AGENCIES FOR 2610 01:35:39,775 --> 01:35:48,551 THE MULTI-YEAR AGENCY 2611 01:35:48,551 --> 01:35:49,452 CROSS-CUTTING PROGRAM TOWARDS 2612 01:35:49,452 --> 01:35:50,419 TRANSFORMING AND DEVELOPING 2613 01:35:50,419 --> 01:35:52,288 WOMEN'S HEALTH. 2614 01:35:52,288 --> 01:35:54,256 AND THE PRESIDENT IN HIS STATE 2615 01:35:54,256 --> 01:35:56,459 OF THE UNION ADDRESS REQUESTED 2616 01:35:56,459 --> 01:36:06,969 $12 BILLION, NOT IN FYI FUNDING 2617 01:36:06,969 --> 01:36:09,371 BUT GOING FORWARD. 2618 01:36:09,371 --> 01:36:11,574 THIS CENTRAL FUND WOULD SUPPORT 2619 01:36:11,574 --> 01:36:12,241 INTERDISCIPLINARY RESEARCH, 2620 01:36:12,241 --> 01:36:14,143 EXPAND OUR NETWORK OF RESEARCH 2621 01:36:14,143 --> 01:36:16,178 CENTERS OF EXCELLENCE AND 2622 01:36:16,178 --> 01:36:17,713 INNOVATION, SERVE AS NATIONAL 2623 01:36:17,713 --> 01:36:20,649 GOLD STANDARD, IT WOULD GO 2624 01:36:20,649 --> 01:36:21,751 BEYOND WHAT A SINGLE INSTITUTE 2625 01:36:21,751 --> 01:36:24,687 COULD DO AT NIH BUT INSTEAD 2626 01:36:24,687 --> 01:36:26,455 BRING TOGETHER THE WORK EFFORTS, 2627 01:36:26,455 --> 01:36:30,059 ADVANCES FROM ALL OF THE 2628 01:36:30,059 --> 01:36:31,460 INSTITUTES AND ADDRESS WOMEN'S 2629 01:36:31,460 --> 01:36:35,064 HEALTH CHALLENGES IN NEW AND 2630 01:36:35,064 --> 01:36:36,599 INTERDISCIPLINARY WAYS. 2631 01:36:36,599 --> 01:36:37,833 NEXT SLIDE PLEASE. 2632 01:36:37,833 --> 01:36:39,702 SOME STEPS WE'VE TAKEN TO GET 2633 01:36:39,702 --> 01:36:42,138 THIS OFF THE GROUND IS WE 2634 01:36:42,138 --> 01:36:44,206 DEVELOPED THE FIRST EVER 2635 01:36:44,206 --> 01:36:45,941 NIH-WIDE NOTICE OF SPECIAL 2636 01:36:45,941 --> 01:36:49,011 INTEREST LINKING TO EVERY SINGLE 2637 01:36:49,011 --> 01:36:50,980 NIH PARENT FUNDING OPPORTUNITY, 2638 01:36:50,980 --> 01:36:52,948 EXPRESSING OUR WILLINGNESS TO 2639 01:36:52,948 --> 01:36:55,484 RECEIVE APPLICATIONS ACROSS A 2640 01:36:55,484 --> 01:36:57,887 WIDE RANGE OF MECHANISMS AND 2641 01:36:57,887 --> 01:37:01,056 WIDE RANGE OF TOPICS, AND IN 2642 01:37:01,056 --> 01:37:02,825 VARIOUS FORMS ON FUNDING 2643 01:37:02,825 --> 01:37:03,559 MECHANISMS. 2644 01:37:03,559 --> 01:37:06,095 WE LAUNCHED A NEW EFFORT AROUND 2645 01:37:06,095 --> 01:37:07,963 COMMON DATA ELEMENTS, SPECIFIC 2646 01:37:07,963 --> 01:37:10,232 TO WOMEN, LOOKING AT ISSUES LIKE 2647 01:37:10,232 --> 01:37:17,039 HOW DO WE CHARACTERIZE MEN PAUSE 2648 01:37:17,039 --> 01:37:18,007 TO COME BIB DATASETS, COMMON 2649 01:37:18,007 --> 01:37:24,046 DATA ELEMENTS TO MAKE THOSE 2650 01:37:24,046 --> 01:37:29,084 DATASETS WORK HARDER PROMOTING 2651 01:37:29,084 --> 01:37:29,585 INTEROPERABILITY. 2652 01:37:29,585 --> 01:37:30,719 WE'RE GOING TO PRIORITIZE 2653 01:37:30,719 --> 01:37:32,888 RESEARCH IN SMALL BUSINESS 2654 01:37:32,888 --> 01:37:34,089 INNOVATION RESEARCH PROGRAM AND 2655 01:37:34,089 --> 01:37:34,957 SMALL BUSINESS TECH TRANSFER 2656 01:37:34,957 --> 01:37:39,128 PROGRAM AND WITH A GOAL OF 2657 01:37:39,128 --> 01:37:41,197 INCREASING OUR INVESTMENT BY 50% 2658 01:37:41,197 --> 01:37:44,600 IN THOSE FOCUSED ON RESEARCH AND 2659 01:37:44,600 --> 01:37:46,235 INNOVATION RELEVANT TO HEALTH OF 2660 01:37:46,235 --> 01:37:46,869 WOMEN. 2661 01:37:46,869 --> 01:37:48,637 WE LAUNCHED FIRST EVER PATHWAYS 2662 01:37:48,637 --> 01:37:50,272 TO PREVENTION SERIES ON 2663 01:37:50,272 --> 01:37:52,241 MENOPAUSE AND MANAGEMENT OF 2664 01:37:52,241 --> 01:37:54,643 MENOPAUSE-RELATED ISSUES AND 2665 01:37:54,643 --> 01:37:54,910 SYMPTOMS. 2666 01:37:54,910 --> 01:37:56,779 AND NICHD LED THE WAY IN 2667 01:37:56,779 --> 01:37:59,481 LAUNCHING A NEW INITIATIVE 2668 01:37:59,481 --> 01:38:01,116 DEDICATED TO RESEARCH ON 2669 01:38:01,116 --> 01:38:01,784 BIOMARKER DISCOVERY AND 2670 01:38:01,784 --> 01:38:03,652 VALIDATION TO HELP IMPROVE OUR 2671 01:38:03,652 --> 01:38:05,487 ABILITY TO PREVENT, DIAGNOSE, 2672 01:38:05,487 --> 01:38:08,224 TREAT CONDITIONS THAT AFFECT 2673 01:38:08,224 --> 01:38:11,093 WOMEN UNIQUELY WITH THEIR 2674 01:38:11,093 --> 01:38:12,995 EFFORT, THEY ARE TARGETING 2675 01:38:12,995 --> 01:38:13,329 ENDOMETRIOSIS. 2676 01:38:13,329 --> 01:38:13,729 NEXT SLIDE PLEASE. 2677 01:38:13,729 --> 01:38:16,432 THIS IS A LITTLE BIT OF MORE 2678 01:38:16,432 --> 01:38:19,168 DETAIL JUST ON THOSE ITEMS FOR 2679 01:38:19,168 --> 01:38:19,468 COMPLETION. 2680 01:38:19,468 --> 01:38:21,470 BUT I CAN GO TO THE NEXT SLIDE 2681 01:38:21,470 --> 01:38:23,339 TO MAKE SURE WE HAVE TIME FOR 2682 01:38:23,339 --> 01:38:23,606 QUESTIONS. 2683 01:38:23,606 --> 01:38:27,142 HERE IS DETAIL ON THE NOTICE OF 2684 01:38:27,142 --> 01:38:29,011 SPECIAL INTEREST THAT'S NIH-WIDE 2685 01:38:29,011 --> 01:38:33,182 ON WOMEN'S HEALTH RESEARCH, 2686 01:38:33,182 --> 01:38:35,017 FIRST RECEIPT DATE THIS WEEK, 2687 01:38:35,017 --> 01:38:36,652 I'M SO EXCITED TO SEE WHAT COMES 2688 01:38:36,652 --> 01:38:37,353 IN. 2689 01:38:37,353 --> 01:38:39,088 WE'RE ADDRESSING CONDITIONS THAT 2690 01:38:39,088 --> 01:38:41,490 AFFECT JUST WOMEN, LIKE 2691 01:38:41,490 --> 01:38:43,025 FIBROIDS, OR MENOPAUSE, DISEASES 2692 01:38:43,025 --> 01:38:44,560 THAT PRESENT AND PROGRESS 2693 01:38:44,560 --> 01:38:46,629 DIFFERENTLY IN WOMEN, LIKE HEART 2694 01:38:46,629 --> 01:38:51,467 DISEASE, OR HIV, AND DISEASES 2695 01:38:51,467 --> 01:38:53,736 THAT PREDOMINANTLY AFFECT WOMEN 2696 01:38:53,736 --> 01:38:58,540 LIKE AUTOIMMUNE DISEASES, 80%, 2697 01:38:58,540 --> 01:39:00,109 OR ALZHEIMER'S DISEASE, 2698 01:39:00,109 --> 01:39:02,511 TWO-THIRDS ARE WOMEN, TWO-THIRDS 2699 01:39:02,511 --> 01:39:07,416 OF CAREGIVERS ARE WOMEN. 2700 01:39:07,416 --> 01:39:07,750 NEXT. 2701 01:39:07,750 --> 01:39:08,851 BIOMARKER EFFORT AND DATA TO 2702 01:39:08,851 --> 01:39:12,888 SUPPORT RE RESEARCH ON WOMEN'S 2703 01:39:12,888 --> 01:39:14,423 HEALTH IS IN DETAIL HERE FOR 2704 01:39:14,423 --> 01:39:15,958 FUTURE REFERENCE. 2705 01:39:15,958 --> 01:39:17,826 I WAS EXCITED AND HONORED TO BE 2706 01:39:17,826 --> 01:39:20,095 WITH THE FIRST LADY AS SHE HAS 2707 01:39:20,095 --> 01:39:20,763 BEEN PUSHING THIS OUT. 2708 01:39:20,763 --> 01:39:24,366 I HAD THE CHANCE TO GO WITH HER 2709 01:39:24,366 --> 01:39:27,536 TO VISIT RESEARCH TRIANGLE IN 2710 01:39:27,536 --> 01:39:30,706 NORTH CAROLINA, GETTING THE WORD 2711 01:39:30,706 --> 01:39:30,873 OUT. 2712 01:39:30,873 --> 01:39:32,675 THEY HAVE A LOT OF INNOVATION 2713 01:39:32,675 --> 01:39:36,312 AND SMALL BUSINESS AND 2714 01:39:36,312 --> 01:39:37,079 TECH-FOCUSED INTEREST AND SHE 2715 01:39:37,079 --> 01:39:39,148 SAID SO MANY OF US, SO MANY 2716 01:39:39,148 --> 01:39:42,318 WOMEN IN OUR LIVES, SUFFER FROM 2717 01:39:42,318 --> 01:39:44,086 HEALTH CONDITIONS FOR WHICH WE 2718 01:39:44,086 --> 01:39:45,921 SIMPLY DON'T HAVE THE ANSWERS OR 2719 01:39:45,921 --> 01:39:46,288 SOLUTIONS. 2720 01:39:46,288 --> 01:39:56,966 THAT'S WHY THIS EFFORT IS SO IM. 2721 01:40:01,303 --> 01:40:05,975 2722 01:40:05,975 --> 01:40:09,678 DR. GENEVIEVE NEAL-PERRY WAS IN 2723 01:40:09,678 --> 01:40:10,579 THE GROUP. 2724 01:40:10,579 --> 01:40:11,547 NEXT WEEK IS NATIONAL WOMEN'S 2725 01:40:11,547 --> 01:40:12,648 HEALTH WEEK. 2726 01:40:12,648 --> 01:40:13,716 WE WILL BE LAUNCHING THE 2727 01:40:13,716 --> 01:40:16,452 STRATEGIC PLAN FOR WOMEN'S 2728 01:40:16,452 --> 01:40:18,220 HEALTH RESEARCH, LAUNCHING 2729 01:40:18,220 --> 01:40:21,590 WOMEN'S HEALTH FACTSHEETS AND 2730 01:40:21,590 --> 01:40:23,592 UNDERSTUDIED AND UNDERREPORTED 2731 01:40:23,592 --> 01:40:29,732 AND UNDERREPRESENTED HEALTH DATA 2732 01:40:29,732 --> 01:40:32,568 BOOKS, FEATURING VIVIAN PINN 2733 01:40:32,568 --> 01:40:34,636 SYMPOSIUM WEDNESDAY AND 2734 01:40:34,636 --> 01:40:36,839 ROUNDTABLE ON MENOPAUSE RESEARCH 2735 01:40:36,839 --> 01:40:39,775 THURSDAY. 2736 01:40:39,775 --> 01:40:41,110 DR. MONICA BERTAGNOLLI WILL 2737 01:40:41,110 --> 01:40:43,946 ANNOUNCE THE STRATEGIC PLAN AND 2738 01:40:43,946 --> 01:40:44,980 PARTICIPATING BY VIDEO IN THE 2739 01:40:44,980 --> 01:40:45,681 RESEARCH EVENTS. 2740 01:40:45,681 --> 01:40:47,016 NEXT SLIDE PLEASE. 2741 01:40:47,016 --> 01:40:48,751 THIS IS MY WRAP-UP SLIDE. 2742 01:40:48,751 --> 01:40:50,219 IF YOU FORGET EVERYTHING THAT 2743 01:40:50,219 --> 01:40:52,688 I'VE SAID UP TO NOW, I WANT YOU 2744 01:40:52,688 --> 01:40:53,589 TO REMEMBER THIS. 2745 01:40:53,589 --> 01:40:54,890 BECAUSE THIS IS EVERYTHING WE 2746 01:40:54,890 --> 01:40:57,493 ARE TRYING TO DO IN A SINGLE 2747 01:40:57,493 --> 01:40:57,826 STUDY. 2748 01:40:57,826 --> 01:40:59,261 IN THE LAB, WE NEED TO MAKE SURE 2749 01:40:59,261 --> 01:41:01,096 WE LOOK AT MALE AND FEMALE 2750 01:41:01,096 --> 01:41:04,166 ANIMALS BECAUSE THEY FUNCTION 2751 01:41:04,166 --> 01:41:04,466 DIFFERENTLY. 2752 01:41:04,466 --> 01:41:05,401 GENE EXPRESSION DIFFERENCE IN 2753 01:41:05,401 --> 01:41:08,103 MALE AND FEMALE ANIMALS. 2754 01:41:08,103 --> 01:41:09,772 THE ANIMAL MODELS DON'T 2755 01:41:09,772 --> 01:41:10,973 NECESSARILY RECAPITULATE THE SEX 2756 01:41:10,973 --> 01:41:12,608 DIFFERENCES YOU SEE IN HUMAN 2757 01:41:12,608 --> 01:41:13,142 DISEASE. 2758 01:41:13,142 --> 01:41:16,445 WE HAVE TO ACCOUNT FOR IT. 2759 01:41:16,445 --> 01:41:19,281 NEXT, IN ORDER TO TRANSLATE 2760 01:41:19,281 --> 01:41:20,582 THOSE PRE-CLINICAL STUDIES INTO 2761 01:41:20,582 --> 01:41:22,117 CLINICAL STUDIES WE NEED TO 2762 01:41:22,117 --> 01:41:24,186 THINK ABOUT WHAT DIFFERENCES 2763 01:41:24,186 --> 01:41:27,156 MIGHT EXIST BY SEX, SO IN PHASE 2764 01:41:27,156 --> 01:41:28,690 1 CLINICAL TRIALS ARE THERE 2765 01:41:28,690 --> 01:41:29,792 SAFETY SIGNALS WE NEED TO BE 2766 01:41:29,792 --> 01:41:31,527 CONCERNED ABOUT, DO WE NEED 2767 01:41:31,527 --> 01:41:34,696 DIFFERENT DOSAGES AS WE START 2768 01:41:34,696 --> 01:41:36,565 THE STUDY, IN CLINICAL TRIALS IN 2769 01:41:36,565 --> 01:41:37,733 HUMANS. 2770 01:41:37,733 --> 01:41:37,933 NEXT. 2771 01:41:37,933 --> 01:41:39,401 AND THEN WHEN WE HAVE THE 2772 01:41:39,401 --> 01:41:41,437 RESULTS OF THE STUDIES ARE WE 2773 01:41:41,437 --> 01:41:42,471 ANALYZING THOSE RESULTS BY SEX 2774 01:41:42,471 --> 01:41:45,340 SO WE CAN SEE FEMALE RESULTS, 2775 01:41:45,340 --> 01:41:46,442 MALE RESULTS, SEE WHETHER THERE 2776 01:41:46,442 --> 01:41:49,711 MIGHT SHALL DIFFERENCES -- BE 2777 01:41:49,711 --> 01:41:51,880 DIFFERENCES AND INFORM FUTURE 2778 01:41:51,880 --> 01:41:52,448 STUDIES. 2779 01:41:52,448 --> 01:41:53,882 SEX SPECIFIC RESULTS REPORTING 2780 01:41:53,882 --> 01:41:55,717 IS SO IMPORTANT, I'M GLAD TO 2781 01:41:55,717 --> 01:41:58,654 TELL YOU THAT THAT'S INCREASED 2782 01:41:58,654 --> 01:42:00,422 FOR PHASE 3 CLINICAL TRIALS 2783 01:42:00,422 --> 01:42:03,926 SUPPORTED BY NIH, NOW 47% OF 2784 01:42:03,926 --> 01:42:04,693 STUDIES REPORTING RESULTS FOR 2785 01:42:04,693 --> 01:42:08,297 MALES AND FEMALES. 2786 01:42:08,297 --> 01:42:09,498 AND THAT INFORMATION TRIGGERS 2787 01:42:09,498 --> 01:42:10,599 SCIENTISTS TO DEVELOP NEW IDEAS 2788 01:42:10,599 --> 01:42:13,535 THAT THEY CAN TAKE BACK INTO THE 2789 01:42:13,535 --> 01:42:16,939 LAB FOR CELL AND ANIMAL STUDIES. 2790 01:42:16,939 --> 01:42:19,007 BY DOING THAT, BY THINKING ABOUT 2791 01:42:19,007 --> 01:42:20,676 THE HEALTH OF WOMEN ACROSS EACH 2792 01:42:20,676 --> 01:42:24,079 STEP OF THE WAY, IN THE RESEARCH 2793 01:42:24,079 --> 01:42:28,317 CONTINUUM, WE'RE DOING RIGOROUS 2794 01:42:28,317 --> 01:42:29,418 RESEARCH, SUPPORTING INNOVATION, 2795 01:42:29,418 --> 01:42:31,253 DISCOVERY, AND EQUITY, AND WE'RE 2796 01:42:31,253 --> 01:42:33,689 SUPPORTING THE EDUCATION OF THE 2797 01:42:33,689 --> 01:42:36,425 FUTURE GENERATION OF HEALTH 2798 01:42:36,425 --> 01:42:38,360 PROFESSIONALS, AND IN THEIR 2799 01:42:38,360 --> 01:42:40,896 CAREERS, WE'RE SUPPORTING THE 2800 01:42:40,896 --> 01:42:41,730 DELIVERY OF INDIVIDUALIZED CARE, 2801 01:42:41,730 --> 01:42:44,967 WHICH EACH AND EVERY ONE OF US 2802 01:42:44,967 --> 01:42:47,035 DESERVES, BASED ON DATA. 2803 01:42:47,035 --> 01:42:48,604 EVIDENCE-BASED CARE COULD NOT BE 2804 01:42:48,604 --> 01:42:50,005 DELIVERED IF YOU DON'T HAVE THE 2805 01:42:50,005 --> 01:42:50,572 EVIDENCE. 2806 01:42:50,572 --> 01:42:52,975 WE'RE TRYING TO MAKE SURE THAT 2807 01:42:52,975 --> 01:42:54,510 EVIDENCE IS AVAILABLE FOR 2808 01:42:54,510 --> 01:42:56,812 EVERYONE AFFECTED BY THE 2809 01:42:56,812 --> 01:43:00,983 DISEASES WE STUDY, AND THAT IS 2810 01:43:00,983 --> 01:43:03,051 EVIDENCE THAT POLICYMAKERS CAN 2811 01:43:03,051 --> 01:43:05,721 USE TO INFORM THEIR HEALTH AND 2812 01:43:05,721 --> 01:43:06,455 SCIENCE POLICY. 2813 01:43:06,455 --> 01:43:06,755 NEXT. 2814 01:43:06,755 --> 01:43:09,758 SO IF YOU'D LIKE TO LEARN MORE 2815 01:43:09,758 --> 01:43:11,059 ABOUT ORWH, FOLLOW US HERE. 2816 01:43:11,059 --> 01:43:14,096 CHECK US OUT ON OUR WEBSITE, 2817 01:43:14,096 --> 01:43:18,700 SIGN UP FOR WEEKLY E-MAILS AND 2818 01:43:18,700 --> 01:43:23,539 QUARTERLY PUBLICATIONS WHERE WE 2819 01:43:23,539 --> 01:43:24,540 FEATURE WOMEN'S RESEARCH, MOST 2820 01:43:24,540 --> 01:43:25,974 RECENT ISSUE ON GLOBAL WOMEN'S 2821 01:43:25,974 --> 01:43:26,208 HEALTH. 2822 01:43:26,208 --> 01:43:28,544 SIGN UP FOR FREE SOURCES, 2823 01:43:28,544 --> 01:43:29,912 VARIOUS LEVELS, AVAILABLE TO THE 2824 01:43:29,912 --> 01:43:30,145 PUBLIC. 2825 01:43:30,145 --> 01:43:32,314 AND YOU CAN FOLLOW US ON SOCIAL 2826 01:43:32,314 --> 01:43:34,249 MEDIA AS INDICATED HERE. 2827 01:43:34,249 --> 01:43:36,084 THANK YOU SO MUCH FOR THIS 2828 01:43:36,084 --> 01:43:36,518 INVITATION. 2829 01:43:36,518 --> 01:43:38,587 I'M SORRY I'M A COUPLE MINUTES 2830 01:43:38,587 --> 01:43:39,154 OVER, TRISH. 2831 01:43:39,154 --> 01:43:40,689 IT'S MY PLEASURE TO BE HERE WITH 2832 01:43:40,689 --> 01:43:40,956 YOU TODAY. 2833 01:43:40,956 --> 01:43:42,224 THANK YOU SO MUCH FOR YOUR 2834 01:43:42,224 --> 01:43:44,593 ATTENTION. 2835 01:43:44,593 --> 01:43:50,732 2836 01:43:50,732 --> 01:43:52,701 >> JANINE, THANK YOU FOR YOUR 2837 01:43:52,701 --> 01:43:54,670 LEADERSHIP. 2838 01:43:54,670 --> 01:43:56,438 WE AT NIH APPRECIATE IT, ACROSS 2839 01:43:56,438 --> 01:43:58,073 THE GOVERNMENT, YOU'VE BEEN A 2840 01:43:58,073 --> 01:43:59,174 REAL DRIVER OF WOMEN'S HEALTH 2841 01:43:59,174 --> 01:44:01,043 AND YOU CONTINUE TO BE CENTRAL 2842 01:44:01,043 --> 01:44:03,645 TO OUR PROGRESS IN THIS AREA. 2843 01:44:03,645 --> 01:44:06,281 SO WE ARE VERY APPRECIATIVE OF 2844 01:44:06,281 --> 01:44:07,716 OUR PARTNERSHIPS WITH YOU, AND 2845 01:44:07,716 --> 01:44:09,685 DELIGHTED YOU WERE ABLE TO CARVE 2846 01:44:09,685 --> 01:44:11,553 OUT TIME FROM YOUR INCREDIBLY 2847 01:44:11,553 --> 01:44:12,854 BUSY SCHEDULE TO JOIN US. 2848 01:44:12,854 --> 01:44:13,722 SO THANK YOU. 2849 01:44:13,722 --> 01:44:17,693 I KNOW YOU HAVE LIMITED TIME 2850 01:44:17,693 --> 01:44:19,761 HERE, SO WHEN WE GET TO 2851 01:44:19,761 --> 01:44:21,196 QUESTIONS IF PEOPLE HAVE 2852 01:44:21,196 --> 01:44:22,164 QUESTIONS MAYBE WE'LL START WITH 2853 01:44:22,164 --> 01:44:23,365 THOSE TO GET THOSE IN. 2854 01:44:23,365 --> 01:44:24,800 IF WE GET QUESTIONS AFTER YOU 2855 01:44:24,800 --> 01:44:26,768 LEAVE, IF YOU DON'T MIND, WE'LL 2856 01:44:26,768 --> 01:44:28,303 PASS THEM ALONG TO YOU. 2857 01:44:28,303 --> 01:44:31,707 WE HAVE A COUPLE PEOPLE WHO 2858 01:44:31,707 --> 01:44:35,110 JOINED US, AFTER OUR 2859 01:44:35,110 --> 01:44:35,444 INTRODUCTIONS. 2860 01:44:35,444 --> 01:44:37,512 CHRISTINA, IF YOU'D LIKE TO 2861 01:44:37,512 --> 01:44:41,016 INTRODUCE YOURSELF. 2862 01:44:41,016 --> 01:44:42,217 2863 01:44:42,217 --> 01:44:44,186 >> HELLO, CHRISTINA WEST, I WORK 2864 01:44:44,186 --> 01:44:46,722 IN OFFICE OF ASSISTANT SECRETARY 2865 01:44:46,722 --> 01:44:48,523 FOR PLANNING AND EVALUATION. 2866 01:44:48,523 --> 01:44:49,558 IN THE BEHAVIORAL HEALTH 2867 01:44:49,558 --> 01:44:51,760 DIVISION THERE, AND MY WORK IS 2868 01:44:51,760 --> 01:44:54,162 CENTERED AROUND MATERNAL AND 2869 01:44:54,162 --> 01:44:54,963 CHILD BEHAVIORAL HEALTH ISSUES, 2870 01:44:54,963 --> 01:44:58,767 I'VE DONE A LOT OF WORK ON 2871 01:44:58,767 --> 01:45:07,075 OPIOID EXPOSURES AND HAVE ALSO 2872 01:45:07,075 --> 01:45:14,883 BEEN WORKING ON ALCOHOL. 2873 01:45:14,883 --> 01:45:15,550 >> AND CHRISTY, INTRODUCE 2874 01:45:15,550 --> 01:45:16,718 YOURSELF. 2875 01:45:16,718 --> 01:45:17,286 >> SURE. 2876 01:45:17,286 --> 01:45:18,920 THANK YOU. 2877 01:45:18,920 --> 01:45:21,790 CHRISTY KAVULIC, DEPARTMENT OF 2878 01:45:21,790 --> 01:45:25,260 EDUCATION, OFFICE OF SPECIAL 2879 01:45:25,260 --> 01:45:26,595 EDUCATION PROGRAMS, OFFICE 2880 01:45:26,595 --> 01:45:28,330 ADMINISTERS INDIVIDUALS WITH 2881 01:45:28,330 --> 01:45:31,066 DISABILITIES EDUCATION ACT, 2882 01:45:31,066 --> 01:45:33,368 WHICH PROVIDES SERVICES FOR 2883 01:45:33,368 --> 01:45:34,903 INFANTS, TODDLERS, PRESCHOOL 2884 01:45:34,903 --> 01:45:37,439 CHILDREN, AND CHILDREN AND YOUTH 2885 01:45:37,439 --> 01:45:39,941 WITH DISABILITIES, AND I LOOK 2886 01:45:39,941 --> 01:45:44,012 FORWARD TO PARTICIPATING ON THIS 2887 01:45:44,012 --> 01:45:44,346 GROUP. 2888 01:45:44,346 --> 01:45:45,080 >> FANTASTIC. 2889 01:45:45,080 --> 01:45:45,480 WELCOME. 2890 01:45:45,480 --> 01:45:48,350 FOR PEOPLE ON THE VIDEOCAST, YOU 2891 01:45:48,350 --> 01:45:50,952 CAN SUBMIT QUESTIONS AND 2892 01:45:50,952 --> 01:45:53,955 COMMENTS BY COMPLETING AN ONLINE 2893 01:45:53,955 --> 01:45:56,224 FEED BACK FORM ON THE VIDEOCAST 2894 01:45:56,224 --> 01:45:59,061 PAGE, IF YOU HAVE QUESTIONS WE 2895 01:45:59,061 --> 01:46:01,730 WOULD BE DELIGHTED TO ENTERTAIN 2896 01:46:01,730 --> 01:46:01,963 THEM. 2897 01:46:01,963 --> 01:46:03,799 IF ANYONE AROUND THE ROOM OR 2898 01:46:03,799 --> 01:46:06,768 ONLINE HAS QUESTIONS FOR OUR 2899 01:46:06,768 --> 01:46:09,071 PANELISTS, I KNOW THERE'S A LOT 2900 01:46:09,071 --> 01:46:11,139 THAT YOU HEARD THIS MORNING, AND 2901 01:46:11,139 --> 01:46:13,208 I'M SURE THERE ARE MANY THINGS 2902 01:46:13,208 --> 01:46:15,310 CIRCULATING IN YOUR MINDS. 2903 01:46:15,310 --> 01:46:18,013 SO OPEN TO QUESTIONS. 2904 01:46:18,013 --> 01:46:20,749 2905 01:46:20,749 --> 01:46:23,852 IF NOT, I'M GOING TO TAKE THE 2906 01:46:23,852 --> 01:46:25,120 PREROGATIVE OF ASKING ONE. 2907 01:46:25,120 --> 01:46:32,294 DR. JONES, I KNOW YOU MENTIONED 2908 01:46:32,294 --> 01:46:37,632 YOU'RE PILOTING TO SEE IF YOU 2909 01:46:37,632 --> 01:46:41,136 CAN DIAGNOSIS WITH PSYCHOLOGIST 2910 01:46:41,136 --> 01:46:43,238 IN A RAPID SCREEN, DOES THAT 2911 01:46:43,238 --> 01:46:44,539 STILL REQUIRE MATERNAL 2912 01:46:44,539 --> 01:46:45,173 CONFIRMATION OF ALCOHOL USE 2913 01:46:45,173 --> 01:46:46,341 ALREADY ARE YOU ABLE TO DIAGNOSE 2914 01:46:46,341 --> 01:46:49,144 ILLS IN THE ABSENCE OF THAT. 2915 01:46:49,144 --> 01:46:50,579 >> IT STILL REQUIRES 2916 01:46:50,579 --> 01:46:53,482 CONFIRMATION OF ALCOHOL, WHICH 2917 01:46:53,482 --> 01:46:54,249 IS OBVIOUSLY A PROBLEM. 2918 01:46:54,249 --> 01:46:59,521 THERE ARE WAYS TO GET AT IT 2919 01:46:59,521 --> 01:47:00,389 THROUGH THE CHILD THEMSELVES, IF 2920 01:47:00,389 --> 01:47:03,158 THEY ARE OLD ENOUGH, OBVIOUSLY. 2921 01:47:03,158 --> 01:47:07,496 SO, WE HAVE IN OUR PILOT 2922 01:47:07,496 --> 01:47:10,132 PROJECTS, WE ARE LOOKING BECAUSE 2923 01:47:10,132 --> 01:47:14,069 OCYR WANTS US TO, AT INDIVIDUALS 2924 01:47:14,069 --> 01:47:16,238 FROM 18- 22. 2925 01:47:16,238 --> 01:47:17,239 >> THANKS. 2926 01:47:17,239 --> 01:47:19,775 AND I AM GOING TO THANK DR. 2927 01:47:19,775 --> 01:47:21,943 CLAYTON FOR PARTICIPATING WITH 2928 01:47:21,943 --> 01:47:25,914 US FROM ORWH IN THE MODELS OF 2929 01:47:25,914 --> 01:47:29,851 CONTINUUM OF CARE INITIATIVE 2930 01:47:29,851 --> 01:47:32,454 THAT NIAAA IS PILOTING FROM 2931 01:47:32,454 --> 01:47:34,589 CHILD BEARING AGE WHICH INCLUDES 2932 01:47:34,589 --> 01:47:38,126 ADOLESCENCE THROUGH MENOPAUSE. 2933 01:47:38,126 --> 01:47:40,796 SO, WE'RE ENCOURAGED BY YOUR 2934 01:47:40,796 --> 01:47:41,763 APPROACH ACROSS THE LIFESPAN, 2935 01:47:41,763 --> 01:47:43,432 UNDERSTANDING THAT IT'S NOT JUST 2936 01:47:43,432 --> 01:47:44,733 DURING PREGNANCY THAT WE NEED TO 2937 01:47:44,733 --> 01:47:48,236 CONSIDER THE HEALTH OF WOMEN. 2938 01:47:48,236 --> 01:47:50,839 AND CONSIDERING THAT FASD IS 2939 01:47:50,839 --> 01:47:52,507 ALSO ONE THOSE HIDDEN CONDITIONS 2940 01:47:52,507 --> 01:47:54,676 IN SOME WAYS, PROVIDERS DON'T 2941 01:47:54,676 --> 01:47:55,877 UNDERSTAND IT, DON'T NECESSARILY 2942 01:47:55,877 --> 01:47:58,613 LOOK FOR IT, AND IN THE PUBLIC 2943 01:47:58,613 --> 01:48:00,916 IN GENERAL, SO ANY THOUGHTS ON 2944 01:48:00,916 --> 01:48:03,652 OTHER WAYS WE MIGHT PARTNER WITH 2945 01:48:03,652 --> 01:48:05,053 YOU AS YOU GO FORWARD ESPECIALLY 2946 01:48:05,053 --> 01:48:06,188 WITH THE WOMEN'S HEALTH 2947 01:48:06,188 --> 01:48:06,822 INITIATIVE? 2948 01:48:06,822 --> 01:48:08,457 >> THANK YOU SO MUCH, TRISH. 2949 01:48:08,457 --> 01:48:10,759 YOU AND GEORGE HAVE BEEN 2950 01:48:10,759 --> 01:48:13,061 INCREDIBLE LEADERS IN THIS 2951 01:48:13,061 --> 01:48:13,428 SPACE. 2952 01:48:13,428 --> 01:48:14,729 GEORGE, RIGHT AWAY, AT THE VERY 2953 01:48:14,729 --> 01:48:17,666 BEGINNING WHEN I STARTED TALKING 2954 01:48:17,666 --> 01:48:20,402 ABOUT SABV HE WAS VERY WELCOMING 2955 01:48:20,402 --> 01:48:23,038 AND NIAAA HAS BEEN FANTASTIC 2956 01:48:23,038 --> 01:48:23,305 PARTNERS. 2957 01:48:23,305 --> 01:48:25,674 DEIDRA ROACH AND OTHERS. 2958 01:48:25,674 --> 01:48:27,075 SO WE APPRECIATE YOUR 2959 01:48:27,075 --> 01:48:28,910 PARTNERSHIP. 2960 01:48:28,910 --> 01:48:31,012 I THINK THAT ONE OF THE ISSUES 2961 01:48:31,012 --> 01:48:33,748 THAT I THINK WE COULD ENHANCE, 2962 01:48:33,748 --> 01:48:35,016 AREAS WE COULD ENHANCE, 2963 01:48:35,016 --> 01:48:36,485 COLLABORATION ACROSS THE 2964 01:48:36,485 --> 01:48:37,686 I.C.s. 2965 01:48:37,686 --> 01:48:38,687 BRINGING IN OTHER PARTNERS LIKE 2966 01:48:38,687 --> 01:48:41,990 YOU WORK A LOT WITH NIDA, 2967 01:48:41,990 --> 01:48:43,058 NATIONAL INSTITUTE ON DRUG 2968 01:48:43,058 --> 01:48:45,994 ABUSE, WE CAN BRING IN NICHD AND 2969 01:48:45,994 --> 01:48:49,064 OTHERS, WE NEED TO FIND WAYS TO 2970 01:48:49,064 --> 01:48:50,799 LEVERAGE THE AMAZING WORK THAT'S 2971 01:48:50,799 --> 01:48:54,870 ALREADY BEING DONE BY YOU AND 2972 01:48:54,870 --> 01:48:57,405 OTHERS, AND HAVE THAT WORK 2973 01:48:57,405 --> 01:48:59,374 TOGETHER IN A FOCUSED WAY SO 2974 01:48:59,374 --> 01:49:00,475 THERE'S ATTENTION TO HEALTH OF 2975 01:49:00,475 --> 01:49:03,078 WOMEN RIGHT AT THE CENTER. 2976 01:49:03,078 --> 01:49:05,080 AND SO I LOOK FORWARD TO WORKING 2977 01:49:05,080 --> 01:49:06,715 WITH YOU, IN BODIES LIKE THIS 2978 01:49:06,715 --> 01:49:08,250 AND OTHERS, AND IT'S CRITICAL TO 2979 01:49:08,250 --> 01:49:10,652 GET THE WORD OUT ABOUT ALL OF 2980 01:49:10,652 --> 01:49:12,521 THIS INFORMATION, SHARING THIS 2981 01:49:12,521 --> 01:49:13,288 INFORMATION WIDELY SO PEOPLE 2982 01:49:13,288 --> 01:49:15,790 UNDERSTAND THAT THERE IS A 2983 01:49:15,790 --> 01:49:18,994 FOCUSED ATTENTION, AS WE HEARD 2984 01:49:18,994 --> 01:49:20,529 FROM KATHY MITCHELL EARLIER 2985 01:49:20,529 --> 01:49:21,363 THERE'S INCREDIBLE NEED FOR THE 2986 01:49:21,363 --> 01:49:25,100 WORD TO GET OUT AS WELL. 2987 01:49:25,100 --> 01:49:25,967 I LOOK FORWARD TO WORKING WITH 2988 01:49:25,967 --> 01:49:27,269 YOU AND OTHERS ON THIS. 2989 01:49:27,269 --> 01:49:28,069 THANKS, TRISH. 2990 01:49:28,069 --> 01:49:30,906 >> I WAS HEARTENED TO SEE THE 2991 01:49:30,906 --> 01:49:31,873 PARTNERSHIP ACROSS FEDERAL 2992 01:49:31,873 --> 01:49:32,541 AGENCIES BEYOND NIH BECAUSE I 2993 01:49:32,541 --> 01:49:33,975 THINK THAT'S WHERE WE CAN MAKE A 2994 01:49:33,975 --> 01:49:36,044 LOT OF PROGRESS AS WELL. 2995 01:49:36,044 --> 01:49:38,246 I KNOW CJ, YOU HAVE YOUR HAND 2996 01:49:38,246 --> 01:49:43,051 UP. 2997 01:49:43,051 --> 01:49:45,020 PLEASE TAKE IT AWAY. 2998 01:49:45,020 --> 01:49:47,422 >> SO, FIRST OF ALL I WANT TO 2999 01:49:47,422 --> 01:49:50,025 SAY ALL THE PRESENTATIONS WERE 3000 01:49:50,025 --> 01:49:50,258 GREAT. 3001 01:49:50,258 --> 01:49:54,429 I DON'T WANT TO PLAY FAVORITES 3002 01:49:54,429 --> 01:49:56,164 BUT MY FAVORITE WAS KATHY 3003 01:49:56,164 --> 01:49:56,598 MITCHELL. 3004 01:49:56,598 --> 01:49:59,801 I WANT TO KNOW THOUGH, 3005 01:49:59,801 --> 01:50:01,770 MS. CLAYTON, WHEN YOU'RE TALKING 3006 01:50:01,770 --> 01:50:04,806 ABOUT OVERALL HEALTH, WHAT ARE 3007 01:50:04,806 --> 01:50:07,876 THE HEALTH INITIATIVES FOR WOMEN 3008 01:50:07,876 --> 01:50:10,178 WHO HAVE FASD, WHO ARE GIVING 3009 01:50:10,178 --> 01:50:14,783 BIRTH TO BABIES, I KNOW THAT WE 3010 01:50:14,783 --> 01:50:21,022 GET A QUALITY -- WE DID A 3011 01:50:21,022 --> 01:50:24,492 QUALITY LIFE SURVEY, OVER 408 3012 01:50:24,492 --> 01:50:29,764 COMORBIDITIES, WITH BEING 3013 01:50:29,764 --> 01:50:30,498 DIAGNOSED WITH FASD, WONDERING 3014 01:50:30,498 --> 01:50:32,734 IF THERE ARE PROJECTS ADDRESSING 3015 01:50:32,734 --> 01:50:34,936 THAT AND MAYBE COUNSELING FOR 3016 01:50:34,936 --> 01:50:41,042 PEOPLE WHO HAVE FASD WHO WANT TO 3017 01:50:41,042 --> 01:50:42,577 DEAL WITH THE GRIEF AND BECOME 3018 01:50:42,577 --> 01:50:43,378 OKAY WITH THEIR DIAGNOSIS 3019 01:50:43,378 --> 01:50:47,916 BECAUSE I KNOW THERE IS A LOT OF 3020 01:50:47,916 --> 01:50:48,149 STIGMA. 3021 01:50:48,149 --> 01:50:51,319 I OWE MY ABILITY TO BE OKAY TO 3022 01:50:51,319 --> 01:50:53,288 KATHY MITCHELL AND MOMS LIKE 3023 01:50:53,288 --> 01:50:53,722 HER. 3024 01:50:53,722 --> 01:50:56,057 >> THANK YOU SO MUCH FOR THAT 3025 01:50:56,057 --> 01:50:57,225 QUESTION, CJ. 3026 01:50:57,225 --> 01:51:00,195 SO, FIRST, THE HEALTH OF PEOPLE 3027 01:51:00,195 --> 01:51:01,730 BEFORE THEY BECOME PREGNANT IS A 3028 01:51:01,730 --> 01:51:02,931 CRITICAL PIECE OF WHAT HAPPENS 3029 01:51:02,931 --> 01:51:06,134 TO THEM WHEN THEY ARE PREGNANT 3030 01:51:06,134 --> 01:51:08,003 AND FOR THE PREGNANCY OUTCOME. 3031 01:51:08,003 --> 01:51:10,972 I THINK YOU'RE HIGHLIGHTING THE 3032 01:51:10,972 --> 01:51:12,140 IMPORTANCE OF US CONSIDERING 3033 01:51:12,140 --> 01:51:14,342 FASD AS PART OF THE COMPONENT OF 3034 01:51:14,342 --> 01:51:18,046 THE HEALTH OF PEOPLE BEFORE THEY 3035 01:51:18,046 --> 01:51:18,847 BECOME PREGNANT. 3036 01:51:18,847 --> 01:51:19,481 NATIONAL INSTITUTE OF CHILD 3037 01:51:19,481 --> 01:51:22,884 HEALTH AND HUMAN DEVELOPMENT HAS 3038 01:51:22,884 --> 01:51:24,085 A SPECIFIC COMPONENT, FOCUSED IN 3039 01:51:24,085 --> 01:51:26,388 A WAY THEY PRESENT THIS 3040 01:51:26,388 --> 01:51:28,823 INFORMATION, FOCUSED ON 3041 01:51:28,823 --> 01:51:29,891 INDIVIDUALS WITH DIFFERENT 3042 01:51:29,891 --> 01:51:32,527 ABILITIES, AND THAT INCLUDES A 3043 01:51:32,527 --> 01:51:34,162 WIDE RANGE OF CONDITIONS, I 3044 01:51:34,162 --> 01:51:38,967 WOULD IMAGINE THAT FASD MAY BE 3045 01:51:38,967 --> 01:51:41,269 INCLUDED IN THE REMIT THERE BUT 3046 01:51:41,269 --> 01:51:43,438 YOU'VE GIVEN ME A QUESTION I'M 3047 01:51:43,438 --> 01:51:44,873 GOING TO FOLLOW UP WITH 3048 01:51:44,873 --> 01:51:46,941 DIRECTLY, DO THEY INCLUDE THAT, 3049 01:51:46,941 --> 01:51:48,076 THAT WOULD MEAN INVESTIGATORS 3050 01:51:48,076 --> 01:51:51,046 COULD APPLY FOR RESEARCH FUNDING 3051 01:51:51,046 --> 01:51:54,082 TO RESEARCH EXACTLY THE QUESTION 3052 01:51:54,082 --> 01:51:56,184 YOU JUST ASKED. 3053 01:51:56,184 --> 01:51:57,719 BUT NOSI, NOTICE OF SPECIAL 3054 01:51:57,719 --> 01:51:58,920 INTEREST I SHOWED, RIGHT NOW 3055 01:51:58,920 --> 01:52:01,222 ALLOWS PEOPLE TO APPLY FOR THAT 3056 01:52:01,222 --> 01:52:02,557 RESEARCH BECAUSE NICHD SIGNED ON 3057 01:52:02,557 --> 01:52:03,958 TO THAT FUNDING OPPORTUNITY. 3058 01:52:03,958 --> 01:52:07,462 SO SOMEBODY WANTS TO DO THAT 3059 01:52:07,462 --> 01:52:09,931 RESEARCH, AND LEARN MORE, SO WE 3060 01:52:09,931 --> 01:52:11,266 HAVE THE DATA, SO THAT IN THE 3061 01:52:11,266 --> 01:52:14,235 FUTURE WE'LL BE ABLE TO SAY, 3062 01:52:14,235 --> 01:52:18,473 HERE'S WHAT WE KNOW, AND BE ABLE 3063 01:52:18,473 --> 01:52:20,742 TO PROVIDE EVIDENCE-BASED 3064 01:52:20,742 --> 01:52:21,576 COUNSEL AND CARE, STEPS THAT 3065 01:52:21,576 --> 01:52:22,744 YOU'RE TALKING ABOUT THE NEED 3066 01:52:22,744 --> 01:52:24,646 FOR, WE NEED THAT RESEARCH TO BE 3067 01:52:24,646 --> 01:52:24,846 DONE. 3068 01:52:24,846 --> 01:52:26,614 WE'RE TRYING TO MAKE A PATHWAY 3069 01:52:26,614 --> 01:52:29,017 BUT NEED OUR ACADEMIC COMMUNITY 3070 01:52:29,017 --> 01:52:30,885 TO COME UP WITH ROBUST 3071 01:52:30,885 --> 01:52:32,554 APPLICATIONS TO FUND THAT 3072 01:52:32,554 --> 01:52:32,921 RESEARCH. 3073 01:52:32,921 --> 01:52:35,490 I'M FORGETTING THE SECOND PART 3074 01:52:35,490 --> 01:52:36,624 OF YOUR QUESTION. 3075 01:52:36,624 --> 01:52:40,061 >> JUST WONDERING IF THERE WERE 3076 01:52:40,061 --> 01:52:40,662 ANY -- 3077 01:52:40,662 --> 01:52:41,930 >> OH, YES. 3078 01:52:41,930 --> 01:52:45,200 >> RESEARCH FOR JUST THE 3079 01:52:45,200 --> 01:52:46,634 WELL-BEING BECAUSE STIGMA IS SO 3080 01:52:46,634 --> 01:52:47,335 HIGH AGAINST BIRTH MOMS, AND I 3081 01:52:47,335 --> 01:52:48,737 DON'T THINK IT SHOULD BE. 3082 01:52:48,737 --> 01:52:50,472 HOWEVER, WHEN I WAS YOUNGER I 3083 01:52:50,472 --> 01:52:54,008 DID BUY INTO THE STIGMA. 3084 01:52:54,008 --> 01:52:56,478 AND BECAUSE OF THE BRAVERY AND 3085 01:52:56,478 --> 01:52:58,113 BECAUSE OF THE PRIVILEGE OF 3086 01:52:58,113 --> 01:53:01,082 HEARING WOMEN LIKE KATHY 3087 01:53:01,082 --> 01:53:03,284 MITCHELL, I'M OKAY WITH, A, MY 3088 01:53:03,284 --> 01:53:05,587 DIAGNOSIS AND BECAUSE I DIDN'T 3089 01:53:05,587 --> 01:53:07,088 KNOW MY BIRTH MOM I'M OKAY WITH 3090 01:53:07,088 --> 01:53:07,322 HER. 3091 01:53:07,322 --> 01:53:12,594 NOT THAT SHE NEEDED ME TO BE. 3092 01:53:12,594 --> 01:53:14,763 BUT THESE ARE REALLY CRUCIAL 3093 01:53:14,763 --> 01:53:16,998 PIECES THAT I THINK PEOPLE 3094 01:53:16,998 --> 01:53:20,935 FORGET OR OVERLOOK WHEN THEY ARE 3095 01:53:20,935 --> 01:53:23,104 TALKING ABOUT MOMS WHO DRINK, 3096 01:53:23,104 --> 01:53:24,639 THAT THEY ARE PEOPLE, THEIR 3097 01:53:24,639 --> 01:53:25,306 CHILDREN LOVE THEIR MOMS, 3098 01:53:25,306 --> 01:53:32,714 WHETHER THEY ARE WITH THEM OR 3099 01:53:32,714 --> 01:53:33,348 NOT. 3100 01:53:33,348 --> 01:53:37,652 AND WHAT I THINK KATHY SAID, THE 3101 01:53:37,652 --> 01:53:44,259 MAYA ANGELOU QUOTE, ABOUT WORDS, 3102 01:53:44,259 --> 01:53:47,962 WE-- I AM AND A LOT OF ALC 3103 01:53:47,962 --> 01:53:51,900 MEMBERS ARE IN A MIASMA OF WORDS 3104 01:53:51,900 --> 01:53:54,369 NOT NICE, NOT ENCOURAGING, SO IF 3105 01:53:54,369 --> 01:53:56,838 THERE ARE PROGRAMS TO HELP 3106 01:53:56,838 --> 01:53:59,340 PEOPLE WITH THE GRIEF PROCESS, 3107 01:53:59,340 --> 01:54:01,075 OR MAYBE ACCEPTANCE PROCESS 3108 01:54:01,075 --> 01:54:03,077 BECAUSE IT'S DESPERATELY NEEDED 3109 01:54:03,077 --> 01:54:05,814 FOR US TO BE OKAY. 3110 01:54:05,814 --> 01:54:07,415 >> THANK YOU, FIRST OF ALL. 3111 01:54:07,415 --> 01:54:09,617 SO MUCH FOR SHARING YOUR 3112 01:54:09,617 --> 01:54:12,387 PERSONAL PERSPECTIVE. 3113 01:54:12,387 --> 01:54:13,454 I APPRECIATE THAT PERSONALLY. 3114 01:54:13,454 --> 01:54:16,191 THIS IS EXACTLY WHY WE NEED TO 3115 01:54:16,191 --> 01:54:16,825 HAVE CONVERSATIONS LIKE THIS. 3116 01:54:16,825 --> 01:54:21,462 SO THAT WE CAN MAKE SURE THESE 3117 01:54:21,462 --> 01:54:23,298 PERSPECTIVES ARE INCLUDED IN 3118 01:54:23,298 --> 01:54:25,700 PROGRAMS WE DESIGN SO WHEN WE 3119 01:54:25,700 --> 01:54:27,335 PARTNERS WITH AGENCIES THAT 3120 01:54:27,335 --> 01:54:28,436 DELIVER CARE, THAT THEY CAN 3121 01:54:28,436 --> 01:54:29,971 INCORPORATE THAT INTO THE CARE 3122 01:54:29,971 --> 01:54:31,739 DELIVERY AND PROVIDE PROGRAMS 3123 01:54:31,739 --> 01:54:33,942 LIKE THE PROGRAMS YOU'RE TALKING 3124 01:54:33,942 --> 01:54:34,375 ABOUT. 3125 01:54:34,375 --> 01:54:39,080 WE DO HAVE RESEARCH THAT 3126 01:54:39,080 --> 01:54:40,515 ADDRESSES STIGMA. 3127 01:54:40,515 --> 01:54:43,551 WE DO HAVE MENTAL HEALTH 3128 01:54:43,551 --> 01:54:44,752 RESEARCH THAT TALKS ABOUT 3129 01:54:44,752 --> 01:54:46,721 SPECIFIC CONCERNS OF WOMEN AND 3130 01:54:46,721 --> 01:54:46,888 MEN. 3131 01:54:46,888 --> 01:54:50,658 AND THIS WOULD BE A TOPIC THAT 3132 01:54:50,658 --> 01:54:52,227 COULD COME UNDER THE MENTAL 3133 01:54:52,227 --> 01:54:55,063 HEALTH OF WOMEN BUT THE PRE--- 3134 01:54:55,063 --> 01:54:57,365 AGAIN, I THINK WE NEED TO REALLY 3135 01:54:57,365 --> 01:55:02,070 FOCUS ON THE HEALTH OF WOMEN OF 3136 01:55:02,070 --> 01:55:03,605 REPRODUCTIVE AGE, 14-45, AND ALL 3137 01:55:03,605 --> 01:55:04,839 ASPECTS OF HEALTH BECAUSE AS WE 3138 01:55:04,839 --> 01:55:07,909 KNOW MENTAL HEALTH IS SO 3139 01:55:07,909 --> 01:55:10,178 CRITICAL TO PHYSICAL HEALTH. 3140 01:55:10,178 --> 01:55:11,179 THEY INTERACT. 3141 01:55:11,179 --> 01:55:14,849 AND THEY, AGAIN, I'M A BIT OF 3142 01:55:14,849 --> 01:55:17,518 REPETITIVE HERE ABOUT NEED TO 3143 01:55:17,518 --> 01:55:20,255 INTEGRATE THIS TOGETHER AND TAKE 3144 01:55:20,255 --> 01:55:20,855 INTERDISCIPLINARY APPROACHES, 3145 01:55:20,855 --> 01:55:21,890 THAT'S INNOVATIVE WHEN YOU WORK 3146 01:55:21,890 --> 01:55:22,156 TOGETHER. 3147 01:55:22,156 --> 01:55:25,627 SO THANK YOU SO MUCH FOR SHARING 3148 01:55:25,627 --> 01:55:27,362 YOUR PERSPECTIVE FOR KATHY 3149 01:55:27,362 --> 01:55:28,429 MITCHELL SHARING PERSPECTIVE, SO 3150 01:55:28,429 --> 01:55:29,998 GLAD YOU'VE BEEN IN TOUCH WITH 3151 01:55:29,998 --> 01:55:32,200 HER AND HER GROUP AND ARE 3152 01:55:32,200 --> 01:55:33,801 GETTING SUPPORT THAT YOU NEED 3153 01:55:33,801 --> 01:55:38,973 AND ARE HERE AS PART OF THIS 3154 01:55:38,973 --> 01:55:39,507 GROUP. 3155 01:55:39,507 --> 01:55:41,042 >> WE'RE LUCKY AROUND THE TABLE, 3156 01:55:41,042 --> 01:55:42,043 VIRTUAL TABLES TO HAVE 3157 01:55:42,043 --> 01:55:43,244 REPRESENTATIVES FROM NATIONAL 3158 01:55:43,244 --> 01:55:44,012 INSTITUTE OF MENTAL HEALTH, 3159 01:55:44,012 --> 01:55:46,848 NATIONAL INSTITUTE OF CHILD 3160 01:55:46,848 --> 01:55:47,715 HEALTH, HEALTH DISPARITIES, AND 3161 01:55:47,715 --> 01:55:48,850 NATIONAL INSTITUTE OF DRUG 3162 01:55:48,850 --> 01:55:52,120 ABUSE, SO AS WELL AS THE 3163 01:55:52,120 --> 01:55:53,187 PROVIDERS FROM AGENCIES AROUND 3164 01:55:53,187 --> 01:55:56,357 THE TABLE SO WE'RE ALL HEARING 3165 01:55:56,357 --> 01:55:58,893 YOUR MESSAGES AND FIGURING OUT 3166 01:55:58,893 --> 01:56:01,262 WHERE WE CAN HELP IN THESE 3167 01:56:01,262 --> 01:56:02,230 DIFFERENT DOMAINS. 3168 01:56:02,230 --> 01:56:03,064 THANK YOU. 3169 01:56:03,064 --> 01:56:07,535 OTHER QUESTIONS? 3170 01:56:07,535 --> 01:56:07,936 CHRIS? 3171 01:56:07,936 --> 01:56:10,171 >> THANK YOU VERY MUCH TO ALL 3172 01:56:10,171 --> 01:56:10,705 THREE PRESENTERS. 3173 01:56:10,705 --> 01:56:13,107 KATHY, I HAD A QUESTION FOR YOU. 3174 01:56:13,107 --> 01:56:14,976 YOU TALKED ABOUT THE NEED TO 3175 01:56:14,976 --> 01:56:17,812 INFORM PROVIDERS AND YOUR 3176 01:56:17,812 --> 01:56:18,813 EXPERIENCE, AND WHAT ADMITTED 3177 01:56:18,813 --> 01:56:21,215 HAS BEEN SOUNDS LIKE FRUSTRATING 3178 01:56:21,215 --> 01:56:22,617 TOO, I WAS THINKING PARTICULAR 3179 01:56:22,617 --> 01:56:23,851 ABOUT MENTAL HEALTH SERVICES 3180 01:56:23,851 --> 01:56:24,819 THOUGH IN PARTICULAR. 3181 01:56:24,819 --> 01:56:27,021 AND WE THINK ABOUT NEED TO 3182 01:56:27,021 --> 01:56:27,789 INFORM PROVIDERS, INFORM OUR 3183 01:56:27,789 --> 01:56:29,290 MENTAL HEALTH PROVIDERS AS WELL. 3184 01:56:29,290 --> 01:56:31,059 WONDERING IF YOU COULD SHARE 3185 01:56:31,059 --> 01:56:32,927 MORE ABOUT YOUR EXPERIENCE WITH 3186 01:56:32,927 --> 01:56:36,431 TRYING TO INTERFACE WITH MENTAL 3187 01:56:36,431 --> 01:56:39,167 HEALTH SERVICES, ACADEMIC 3188 01:56:39,167 --> 01:56:41,369 SERVICES, WHAT HAS THE THE FIT 3189 01:56:41,369 --> 01:56:42,670 FELT LIKE OR NOT FELT LIKE AS A 3190 01:56:42,670 --> 01:56:46,941 MOTHER TRYING TO GET HELP FOR 3191 01:56:46,941 --> 01:56:47,408 YOUR CHILDREN? 3192 01:56:47,408 --> 01:56:48,776 >> I THINK SADLY, YOU KNOW, I'LL 3193 01:56:48,776 --> 01:56:51,212 HAVE TO SAY PRETTY MUCH ACROSS 3194 01:56:51,212 --> 01:56:54,949 THE BOARD MENTAL HEALTH 3195 01:56:54,949 --> 01:56:56,584 PROVIDERS ARE REALLY NOT AWARE 3196 01:56:56,584 --> 01:57:01,089 AT ALL ABOUT WHAT FETAL ALCOHOL 3197 01:57:01,089 --> 01:57:02,857 SPECTRUM DISORDERS ARE. 3198 01:57:02,857 --> 01:57:06,794 AND IT REALLY RESULTS IN VERY 3199 01:57:06,794 --> 01:57:07,996 POOR OUTCOMES THAT COULD BE -- 3200 01:57:07,996 --> 01:57:11,733 YOU KNOW, THE ANSWERS ARE SO 3201 01:57:11,733 --> 01:57:14,035 SIMPLE IN TERMS OF, YOU KNOW, 3202 01:57:14,035 --> 01:57:16,337 EDUCATION IN SCHOOLS, PUTTING 3203 01:57:16,337 --> 01:57:18,373 THE QUESTIONS ON THE EXAMS, YOU 3204 01:57:18,373 --> 01:57:18,840 KNOW. 3205 01:57:18,840 --> 01:57:22,310 WE COULD BE DOING SO MUCH MORE 3206 01:57:22,310 --> 01:57:24,612 BUT THERE'S A COMPLETE 3207 01:57:24,612 --> 01:57:26,247 DISCONNECT FROM EARLY CHILDHOOD 3208 01:57:26,247 --> 01:57:29,450 ALL THE WAY INTO ADULTHOOD, 3209 01:57:29,450 --> 01:57:31,853 WHERE VERY FEW PEOPLE THAT LIVE 3210 01:57:31,853 --> 01:57:34,155 WITH THESE DISORDERS ARE EVER 3211 01:57:34,155 --> 01:57:35,356 REALLY DIAGNOSED. 3212 01:57:35,356 --> 01:57:37,992 THEY ARE MISDIAGNOSED WITH A 3213 01:57:37,992 --> 01:57:40,294 WHOLE ARRAY OF MENTAL HEALTH 3214 01:57:40,294 --> 01:57:42,363 ISSUES, AND, YOU KNOW, I THINK 3215 01:57:42,363 --> 01:57:45,633 IT'S A WONDERFUL THING TO HEAR, 3216 01:57:45,633 --> 01:57:47,635 YOU KNOW, THIS INITIATIVE OUT OF 3217 01:57:47,635 --> 01:57:53,875 THE WHITE HOUSE AND THIS 3218 01:57:53,875 --> 01:57:55,076 COLLABORATIVE INTERAGENCY 3219 01:57:55,076 --> 01:57:55,676 COLLABORATION AND PARTNERSHIP 3220 01:57:55,676 --> 01:57:58,813 BECAUSE, OKAY, MAGIC WAND TIME 3221 01:57:58,813 --> 01:57:59,881 AGAIN, THE BEAUTIFUL RESEARCH 3222 01:57:59,881 --> 01:58:02,417 HAS COME OUT OF ALL OF YOUR 3223 01:58:02,417 --> 01:58:02,850 AGENCIES. 3224 01:58:02,850 --> 01:58:06,354 I MEAN, I'M MOST FAMILIAR WITH 3225 01:58:06,354 --> 01:58:06,954 NIAAA. 3226 01:58:06,954 --> 01:58:09,090 BUT THE RESEARCH THAT'S BEEN 3227 01:58:09,090 --> 01:58:10,958 DONE, THERE SEEMS TO BE A 3228 01:58:10,958 --> 01:58:13,795 DISCONNECT WHERE EVEN WITH THE 3229 01:58:13,795 --> 01:58:17,165 AUTOIMMUNE ISSUES, INCREASE IN 3230 01:58:17,165 --> 01:58:18,966 AUTOIMMUNE, WHEN THERE'S, YOU 3231 01:58:18,966 --> 01:58:20,468 KNOW, PRENATAL EXPOSURE. 3232 01:58:20,468 --> 01:58:23,204 YOU KNOW, WE REALLY DON'T 3233 01:58:23,204 --> 01:58:24,739 UNDERSTAND THROUGH THE LIFESPAN 3234 01:58:24,739 --> 01:58:26,808 WHAT IS HAPPENING TO PEOPLE THAT 3235 01:58:26,808 --> 01:58:28,042 HAVE BEEN EXPOSED. 3236 01:58:28,042 --> 01:58:30,411 WE TALKED ABOUT THE HOMELESSNESS 3237 01:58:30,411 --> 01:58:31,879 ISSUE IN SAN FRANCISCO BEFORE 3238 01:58:31,879 --> 01:58:33,481 THE MEETING. 3239 01:58:33,481 --> 01:58:34,749 YOU BETTER BELIEVE A LOT OF 3240 01:58:34,749 --> 01:58:36,150 THOSE FOLKS HAD MOTHERS WHO 3241 01:58:36,150 --> 01:58:37,585 DRANK DURING PREGNANCY. 3242 01:58:37,585 --> 01:58:38,686 THERE'S THIS DISCONNECT, AND 3243 01:58:38,686 --> 01:58:39,587 THERE'S ANOTHER ENVIRONMENT. 3244 01:58:39,587 --> 01:58:41,989 I'VE WORKED A LOT WITH SHELTERS, 3245 01:58:41,989 --> 01:58:43,825 WHERE THE PEOPLE REALLY WANT TO 3246 01:58:43,825 --> 01:58:45,493 DO A GOOD JOB AND HELP PEOPLE 3247 01:58:45,493 --> 01:58:48,529 BUT THEY REALLY HAVE NO CLUE 3248 01:58:48,529 --> 01:58:49,530 ABOUT THEIR BRAIN DIFFERENCES 3249 01:58:49,530 --> 01:58:51,632 AND HOW TO DESIGN THEIR 3250 01:58:51,632 --> 01:58:51,966 PROGRAMS. 3251 01:58:51,966 --> 01:58:53,701 SO THAT'S -- IT'S A GREAT 3252 01:58:53,701 --> 01:58:54,802 QUESTION, A BIG QUESTION. 3253 01:58:54,802 --> 01:58:57,972 BUT IT'S A SAD QUESTION FOR ME 3254 01:58:57,972 --> 01:58:59,707 BECAUSE, YOU KNOW, AFTER 40 3255 01:58:59,707 --> 01:59:01,142 YEARS WITH THIS LIVED 3256 01:59:01,142 --> 01:59:02,777 EXPERIENCE, IT'S LIKE I FEEL 3257 01:59:02,777 --> 01:59:04,579 LIKE WE HAVEN'T REALLY MADE THE 3258 01:59:04,579 --> 01:59:06,247 IMPACT THAT WE COULD. 3259 01:59:06,247 --> 01:59:07,982 IT'S REALLY GETTING -- WE HAVE 3260 01:59:07,982 --> 01:59:09,851 TO REALLY INJECT THIS THING IN 3261 01:59:09,851 --> 01:59:12,153 HERE SO IT STICKS. 3262 01:59:12,153 --> 01:59:14,422 THAT'S EXAMS ON QUESTIONS, IT'S 3263 01:59:14,422 --> 01:59:15,756 MEASURABLE OUTCOMES, IF THEY ARE 3264 01:59:15,756 --> 01:59:16,858 GOING TO GET GOVERNMENT MONEY, 3265 01:59:16,858 --> 01:59:18,593 HOW ARE YOU GOING TO INTEGRATE 3266 01:59:18,593 --> 01:59:18,926 THIS? 3267 01:59:18,926 --> 01:59:25,800 I THINK WE COULD MAKE A BIG 3268 01:59:25,800 --> 01:59:26,701 DIFFERENCE BUT IT HELPS MENTAL 3269 01:59:26,701 --> 01:59:29,537 HEALTH PROVIDERS WHEN THEY 3270 01:59:29,537 --> 01:59:29,871 UNDERSTAND 3271 01:59:29,871 --> 01:59:36,978 WOW, IT HELPS THEM GET BETTER 3272 01:59:36,978 --> 01:59:37,245 OUTCOMES. 3273 01:59:37,245 --> 01:59:38,613 >> 30 YEARS AGO THERE WAS ONE 3274 01:59:38,613 --> 01:59:40,248 LINE IN A DEVELOPMENTAL TEXT 3275 01:59:40,248 --> 01:59:41,215 BOOK, DISCOURAGING TO HEAR IT'S 3276 01:59:41,215 --> 01:59:43,017 STILL A PROBLEM 30 YEARS LATER, 3277 01:59:43,017 --> 01:59:43,217 YEAH. 3278 01:59:43,217 --> 01:59:43,851 THANK YOU. 3279 01:59:43,851 --> 01:59:45,153 >> I THINK WE'VE ALL BENEFITED 3280 01:59:45,153 --> 01:59:47,889 FROM HEARING IN OUR PAST COUPLE 3281 01:59:47,889 --> 01:59:48,890 MEETINGS FROM THE ADULT 3282 01:59:48,890 --> 01:59:50,091 LEADERSHIP COMMITTEE OF 3283 01:59:50,091 --> 01:59:51,125 INDIVIDUALS WITH FASD AND 3284 01:59:51,125 --> 01:59:52,393 CAREGIVERS BECAUSE IT GIVES US 3285 01:59:52,393 --> 01:59:54,595 THE PERSPECTIVE OF WHAT WE ARE 3286 01:59:54,595 --> 01:59:57,064 MISSING AND I KNOW JAN LUCKY 3287 01:59:57,064 --> 01:59:58,199 WITH HER HAND UP AND PROBABLY 3288 01:59:58,199 --> 02:00:00,034 WANTED TO ADD TO MAYBE SOME 3289 02:00:00,034 --> 02:00:04,639 THINGS KATHY SAID. 3290 02:00:04,639 --> 02:00:09,043 SO JAN? 3291 02:00:09,043 --> 02:00:10,678 >> WHILE WE'RE WAITING FOR JAN 3292 02:00:10,678 --> 02:00:10,811 -- 3293 02:00:10,811 --> 02:00:11,479 >> SORRY. 3294 02:00:11,479 --> 02:00:14,348 I HAD TO UNMUTE. 3295 02:00:14,348 --> 02:00:14,782 IT WOULDN'T UNMUTE. 3296 02:00:14,782 --> 02:00:16,517 TWO OR THREE THINGS I WAS 3297 02:00:16,517 --> 02:00:17,818 THINKING. 3298 02:00:17,818 --> 02:00:21,789 ONE IS FOR DR. CLAYTON. 3299 02:00:21,789 --> 02:00:23,658 WHEN YOU MENTIONED UNDERSTUDIED, 3300 02:00:23,658 --> 02:00:24,992 UNDERREPRESENTED, UNDERREPORTED, 3301 02:00:24,992 --> 02:00:28,229 HAD YOU THOUGHT OF WOMEN WITH 3302 02:00:28,229 --> 02:00:30,231 FASD SPECIFICALLY AS A GROUP, 3303 02:00:30,231 --> 02:00:32,300 NOT JUST WITHIN THE CONTEXT OF 3304 02:00:32,300 --> 02:00:35,770 OTHER DISABILITIES BUT IS THAT 3305 02:00:35,770 --> 02:00:37,305 GROUP SPECIFICALLY BECAUSE I 3306 02:00:37,305 --> 02:00:39,173 THINK THERE IS A NEED THERE AND 3307 02:00:39,173 --> 02:00:41,709 IN SOME WORK I'VE DONE IN THE 3308 02:00:41,709 --> 02:00:44,645 LAST FEW YEARS WITH WOMEN WITH 3309 02:00:44,645 --> 02:00:47,081 FASD AND I'M THINKING OF JUST 3310 02:00:47,081 --> 02:00:48,916 THAT AT THE RECENT SEATTLE 3311 02:00:48,916 --> 02:00:51,352 CONFERENCE A SESSION IN THE 3312 02:00:51,352 --> 02:00:52,853 ADULT STREAM FOR PEOPLE WITH 3313 02:00:52,853 --> 02:00:54,822 FASD THAT WAS BROKEN OUT INTO 3314 02:00:54,822 --> 02:00:56,357 ONE FOR WOMEN ONLY, ONE FOR MEN 3315 02:00:56,357 --> 02:00:57,124 ONLY. 3316 02:00:57,124 --> 02:00:58,793 WITH THE CHANCE TO ASK 3317 02:00:58,793 --> 02:00:59,060 QUESTIONS. 3318 02:00:59,060 --> 02:01:01,195 I WAS STRUCK BY SOME OF WHAT YOU 3319 02:01:01,195 --> 02:01:01,562 SAID. 3320 02:01:01,562 --> 02:01:04,131 AND WHAT THE WOMEN IN THAT 3321 02:01:04,131 --> 02:01:06,234 SESSION SAID AROUND THE 3322 02:01:06,234 --> 02:01:08,869 REPRODUCTIVE ISSUES THAT WERE IN 3323 02:01:08,869 --> 02:01:10,404 EVERY SINGLE WOMAN IN THAT 3324 02:01:10,404 --> 02:01:10,605 GROUP. 3325 02:01:10,605 --> 02:01:14,008 AND SO AS AN UNDERSTUDIED GROUP, 3326 02:01:14,008 --> 02:01:15,309 GOING FORWARD BOTH FROM THE 3327 02:01:15,309 --> 02:01:17,178 REPRODUCTIVE HEALTH ISSUES AND 3328 02:01:17,178 --> 02:01:22,016 FROM THE OTHER HEALTH ISSUES 3329 02:01:22,016 --> 02:01:23,417 THAT WE'RE REASONABLY CERTAIN 3330 02:01:23,417 --> 02:01:24,518 ARE MORE COMMON IN THAT GROUP 3331 02:01:24,518 --> 02:01:26,254 HAD YOU THOUGHT ABOUT THEM AS A 3332 02:01:26,254 --> 02:01:28,022 SPECIFIC GROUP IS ONE QUESTION. 3333 02:01:28,022 --> 02:01:34,128 AND THEN A GENERAL QUESTION, 3334 02:01:34,128 --> 02:01:36,097 PIGGYBACKING ON WHAT CJ SAID 3335 02:01:36,097 --> 02:01:38,299 WITH RESPECT TO KATHY AND SORT 3336 02:01:38,299 --> 02:01:40,167 OF A GENERAL THING AROUND HAVE 3337 02:01:40,167 --> 02:01:41,369 WE LOOKED AT IN THE MENTAL 3338 02:01:41,369 --> 02:01:43,004 HEALTH PIECE, WHICH IS SO 3339 02:01:43,004 --> 02:01:45,306 PROBLEMATIC, NOT JUST FOR PEOPLE 3340 02:01:45,306 --> 02:01:46,507 WITH FASD BUT HAVING DONE A 3341 02:01:46,507 --> 02:01:51,679 GREAT DEAL OF WORK WITH FAMILIES 3342 02:01:51,679 --> 02:01:53,414 AND SEEING THE UNRESOLVED GRIEF 3343 02:01:53,414 --> 02:01:57,585 THAT NO ONE IS ADDRESSING WITHIN 3344 02:01:57,585 --> 02:02:00,521 THE CONTEXT OF FASD THAT NEEDS 3345 02:02:00,521 --> 02:02:02,923 TO BE DONE, NOT JUST IN BIRTH 3346 02:02:02,923 --> 02:02:04,125 FAMILIES BUT IN ADOPTIVE 3347 02:02:04,125 --> 02:02:05,559 FAMILIES IN PARTICULAR. 3348 02:02:05,559 --> 02:02:09,830 AND LOOKING AT THAT FROM A 3349 02:02:09,830 --> 02:02:11,265 MENTAL HEALTH APPROACH KIND OF 3350 02:02:11,265 --> 02:02:13,034 FUNDING PIECE THAT REALLY NEEDS 3351 02:02:13,034 --> 02:02:15,102 TO BE ADDRESSED. 3352 02:02:15,102 --> 02:02:17,171 AND TO ME HAVING DONE THIS FOR 3353 02:02:17,171 --> 02:02:20,141 40 YEARS, THIS IS A REALLY 3354 02:02:20,141 --> 02:02:20,775 SIGNIFICANT OVERSIGHT. 3355 02:02:20,775 --> 02:02:23,210 SO I'LL JUST LEAVE IT THERE. 3356 02:02:23,210 --> 02:02:23,644 THOSE TWO THINGS. 3357 02:02:23,644 --> 02:02:25,713 >> THANK YOU SO MUCH FOR YOUR 3358 02:02:25,713 --> 02:02:27,915 QUESTIONS, JAN. 3359 02:02:27,915 --> 02:02:30,117 SO THE FIRST ONE IS WE WANT TO 3360 02:02:30,117 --> 02:02:33,054 BE ABLE TO BE BROAD, WHEN WE PUT 3361 02:02:33,054 --> 02:02:34,288 OUT NOTICES OF FUNDING 3362 02:02:34,288 --> 02:02:34,922 OPPORTUNITIES, BECAUSE WE DON'T 3363 02:02:34,922 --> 02:02:36,791 KNOW WHERE ALL OF THE BRILLIANT 3364 02:02:36,791 --> 02:02:40,294 IDEAS ARE GOING TO COME FROM. 3365 02:02:40,294 --> 02:02:43,664 SO WE DID NOT SPECIFY FASD PER 3366 02:02:43,664 --> 02:02:47,935 SE IN THE UNDERSTUDIED, 3367 02:02:47,935 --> 02:02:48,803 UNDERRECORDED OR 3368 02:02:48,803 --> 02:02:49,737 UNDERREPRESENTED POPULATIONS OF 3369 02:02:49,737 --> 02:02:51,439 WOMEN, NOTICE OF SPECIAL 3370 02:02:51,439 --> 02:02:52,106 INTEREST, AN ADMINISTRATIVE 3371 02:02:52,106 --> 02:02:52,973 SUPPLEMENT PROGRAM. 3372 02:02:52,973 --> 02:02:53,941 HOWEVER, BASE ON TODAY'S 3373 02:02:53,941 --> 02:02:57,778 DISCUSSION I WOULD THINK THERE 3374 02:02:57,778 --> 02:02:59,146 WOULD BE QUITE A BIT OF INTEREST 3375 02:02:59,146 --> 02:03:00,681 IN APPLYING FOR THAT KIND OF 3376 02:03:00,681 --> 02:03:02,283 FUNDING AND THAT WOULD BE AN 3377 02:03:02,283 --> 02:03:05,353 AREA THAT WE WOULD BE RECEPTIVE 3378 02:03:05,353 --> 02:03:07,054 TO RECEIVING APPLICATIONS ON IN 3379 02:03:07,054 --> 02:03:08,723 PARTNERSHIP WITH OUR INSTITUTE 3380 02:03:08,723 --> 02:03:10,358 AND CENTER COLLEAGUES. 3381 02:03:10,358 --> 02:03:14,161 I KNOW THAT NIMH IS ON THE 3382 02:03:14,161 --> 02:03:15,096 MEETING. 3383 02:03:15,096 --> 02:03:17,331 AND SO THERE MAY BE RESPONSES 3384 02:03:17,331 --> 02:03:19,367 THEY CAN PROVIDE, PERHAPS LATER, 3385 02:03:19,367 --> 02:03:24,271 OR AT THE BREAK, FOR YOU 3386 02:03:24,271 --> 02:03:25,172 REGARDING THE ABSOLUTELY 3387 02:03:25,172 --> 02:03:27,908 HEARTBREAKING CONCERN THAT YOU 3388 02:03:27,908 --> 02:03:30,111 IDENTIFIED AROUND UNRESOLVED 3389 02:03:30,111 --> 02:03:33,180 GRIEF RELATED TO FASD, ALL OF 3390 02:03:33,180 --> 02:03:36,884 THESE FACTORS ARE PART OF THE 3391 02:03:36,884 --> 02:03:37,485 CONSTELLATION OF CIRCUMSTANCES 3392 02:03:37,485 --> 02:03:40,087 THAT AFFECT OUR HEALTH. 3393 02:03:40,087 --> 02:03:44,592 AND SO I KNOW THAT NIMH IS 3394 02:03:44,592 --> 02:03:46,327 COMMITTED TO UNDERSTANDING THOSE 3395 02:03:46,327 --> 02:03:48,195 AND PUTTING -- GENERATING DATA 3396 02:03:48,195 --> 02:03:49,964 THAT COULD BE USED TO DELIVER 3397 02:03:49,964 --> 02:03:51,599 BETTER CARE FOR EVERYONE. 3398 02:03:51,599 --> 02:03:54,001 BUT I'M NOT FAMILIAR WITH A 3399 02:03:54,001 --> 02:03:54,935 SPECIFIC PROGRAM. 3400 02:03:54,935 --> 02:03:57,605 I REALLY APPRECIATE ALL OF YOUR 3401 02:03:57,605 --> 02:03:58,806 QUESTIONS AND INTERESTS IN THE 3402 02:03:58,806 --> 02:03:59,140 TOPIC. 3403 02:03:59,140 --> 02:04:01,242 I LEARNED A LOT. 3404 02:04:01,242 --> 02:04:04,512 THANK YOU ALL, SPEAKERS AND 3405 02:04:04,512 --> 02:04:04,812 COLLEAGUES. 3406 02:04:04,812 --> 02:04:05,613 AND ATTENDEES. 3407 02:04:05,613 --> 02:04:08,349 I AM GOING TO NEED TO BREAK AWAY 3408 02:04:08,349 --> 02:04:10,518 FOR ANOTHER MEETING BUT THANK 3409 02:04:10,518 --> 02:04:14,822 YOU AGAIN, DR. POWELL, AND DR. 3410 02:04:14,822 --> 02:04:16,023 BALACHOVA, FOR INVITING ME TO BE 3411 02:04:16,023 --> 02:04:18,459 WITH YOU TODAY. 3412 02:04:18,459 --> 02:04:20,761 THANK YOU, EVERYONE. 3413 02:04:20,761 --> 02:04:21,729 >> WE'RE APPRECIATIVE YOU CARVED 3414 02:04:21,729 --> 02:04:23,431 OUT THE TIME TO JOIN US. 3415 02:04:23,431 --> 02:04:24,465 THANK YOU AND GOOD LUCK GOING 3416 02:04:24,465 --> 02:04:27,535 FORWARD WITH THE WOMEN'S HEALTH 3417 02:04:27,535 --> 02:04:28,035 INITIATIVE. 3418 02:04:28,035 --> 02:04:30,504 I UNDERSTAND WE HAVE A QUESTION 3419 02:04:30,504 --> 02:04:32,139 FROM THE AUDIENCE. 3420 02:04:32,139 --> 02:04:33,674 >> IT'S TWO COMMENTS. 3421 02:04:33,674 --> 02:04:36,844 FIRST ONE WILL BE COMMENT THAT 3422 02:04:36,844 --> 02:04:39,346 I'LL MAKE TO CHRIS' QUESTION, 3423 02:04:39,346 --> 02:04:42,183 WHICH SPEAKS TO THE POWER OF 3424 02:04:42,183 --> 02:04:44,285 THIS COMMITTEE, ACTIVITIES THAT 3425 02:04:44,285 --> 02:04:50,257 WERE BEGUN MANY YEARS AGO THAT 3426 02:04:50,257 --> 02:04:54,328 EVENTUALLY LED TO THE DSM-V 3427 02:04:54,328 --> 02:04:57,298 ADOPTING THE NDPAE DIAGNOSIS, A 3428 02:04:57,298 --> 02:04:57,965 DIAGNOSIS MENTAL HEALTH 3429 02:04:57,965 --> 02:05:00,634 PROVIDERS CAN GIVE TO PATIENTS 3430 02:05:00,634 --> 02:05:02,303 FOR INDIVIDUALS THAT ARE 3431 02:05:02,303 --> 02:05:03,437 PRENATALLY EXPOSED TO ALCOHOL 3432 02:05:03,437 --> 02:05:05,806 BUT MIGHT NOT HAVE SOME PHYSICAL 3433 02:05:05,806 --> 02:05:06,373 FEATURES. 3434 02:05:06,373 --> 02:05:08,876 SO I DO WANT TO MAKE THAT 3435 02:05:08,876 --> 02:05:09,310 ACKNOWLEDGMENT. 3436 02:05:09,310 --> 02:05:14,381 WE DO HAVE A COMMENT FROM THE 3437 02:05:14,381 --> 02:05:16,217 AUDIENCE, FROM MARY O'CONNOR, 3438 02:05:16,217 --> 02:05:17,251 WHO COMMENTS THAT SHE CONTINUES 3439 02:05:17,251 --> 02:05:20,821 TO WORK IN THE AREA OF 3440 02:05:20,821 --> 02:05:21,589 PSYCHIATRIC ILLNESS IN 3441 02:05:21,589 --> 02:05:23,324 INDIVIDUALS WITH FASD AND BRINGS 3442 02:05:23,324 --> 02:05:26,060 UP THE ISSUE ON EVERY ARTICLE 3443 02:05:26,060 --> 02:05:28,696 SHE REVIEWS OR PRESENTATION SHE 3444 02:05:28,696 --> 02:05:29,263 MAKES. 3445 02:05:29,263 --> 02:05:29,730 SO -- 3446 02:05:29,730 --> 02:05:30,764 >> THANK YOU, MARY. 3447 02:05:30,764 --> 02:05:34,168 THAT'S GOOD NEWS AS WELL BECAUSE 3448 02:05:34,168 --> 02:05:37,004 WE DO, AS KATHY AND DR. JONES 3449 02:05:37,004 --> 02:05:38,439 AND OTHERS INDICATE, WE DO NEED 3450 02:05:38,439 --> 02:05:39,840 TO GET THE WORD OUT. 3451 02:05:39,840 --> 02:05:42,510 WE STILL HAVE A LONG WAY TO GO 3452 02:05:42,510 --> 02:05:44,378 FROM NIAAA PERSPECTIVE. 3453 02:05:44,378 --> 02:05:46,881 WE'VE CREATED A HEALTH CARE 3454 02:05:46,881 --> 02:05:47,982 PROFESSIONALS CORE RESOURCE THAT 3455 02:05:47,982 --> 02:05:49,850 INCLUDES A SECTION ON FASD, 3456 02:05:49,850 --> 02:05:51,819 WE'RE ON THE WORK TRYING TO PUT 3457 02:05:51,819 --> 02:05:53,120 TOGETHER A CURRICULUM FOR 3458 02:05:53,120 --> 02:05:54,221 MEDICAL SCHOOLS, BUT CERTAINLY 3459 02:05:54,221 --> 02:05:55,990 SOME ISSUES THAT YOU'VE 3460 02:05:55,990 --> 02:05:57,625 HIGHLIGHTED WE NEED TO HIT 3461 02:05:57,625 --> 02:05:57,925 HARDER ON. 3462 02:05:57,925 --> 02:05:58,492 THANK YOU. 3463 02:05:58,492 --> 02:06:01,028 WE'RE GOING TO TAKE TIME TO 3464 02:06:01,028 --> 02:06:02,963 BREAK FOR LUNCH. 3465 02:06:02,963 --> 02:06:05,165 WE'RE SCHEDULED TO RECONVENE AT 3466 02:06:05,165 --> 02:06:06,133 1:10 THIS AFTERNOON. 3467 02:06:06,133 --> 02:06:08,235 WE HOPE TO SEE ALL OF YOU BACK 3468 02:06:08,235 --> 02:06:09,803 THEN. 3469 02:06:09,803 --> 02:06:11,664 SO THANK YOU. 3470 02:06:14,414 --> 02:06:17,717 WELCOME BACK AFTER LUNCH BREAK. 3471 02:06:17,717 --> 02:06:21,021 3472 02:06:21,021 --> 02:06:22,322 WE WOULD LIKE TO BEGIN ON TIME 3473 02:06:22,322 --> 02:06:25,358 TO BE ON TIME. 3474 02:06:25,358 --> 02:06:27,894 AGAIN, WELCOME, EVERYBODY, TO 3475 02:06:27,894 --> 02:06:29,429 PUBLIC MEETING OF THE 3476 02:06:29,429 --> 02:06:31,298 INTERAGENCY COORDINATING 3477 02:06:31,298 --> 02:06:33,933 COMMITTEE ON FETAL ALCOHOL 3478 02:06:33,933 --> 02:06:35,035 SPECTRUM DISORDERS. 3479 02:06:35,035 --> 02:06:37,003 WE HAVE OUR MEMBERS IN THIS 3480 02:06:37,003 --> 02:06:37,771 ROOM. 3481 02:06:37,771 --> 02:06:40,273 WE ALSO HAVE MEMBERS ON ZOOM. 3482 02:06:40,273 --> 02:06:43,777 AND WE HAVE VIDEOCAST AND WE 3483 02:06:43,777 --> 02:06:47,914 WELCOME QUESTIONS AND COMMENTS 3484 02:06:47,914 --> 02:06:51,751 FROM VIDEOCAST PARTICIPANTS. 3485 02:06:51,751 --> 02:06:52,886 YOU CAN SUBMIT QUESTIONS AND 3486 02:06:52,886 --> 02:06:55,455 COMMENTS ON THE BOX. 3487 02:06:55,455 --> 02:07:02,595 WE APPRECIATE YOU COMING TO TO 3488 02:07:02,595 --> 02:07:03,596 BE WITH TODAY. 3489 02:07:03,596 --> 02:07:04,998 I'LL BEGIN WITH BRIEF 3490 02:07:04,998 --> 02:07:07,300 INTRODUCTIONS AND UPDATE AND 3491 02:07:07,300 --> 02:07:09,135 WE'LL HEAR PRESENTATIONS BY 3492 02:07:09,135 --> 02:07:15,542 MEMBERS WHEN THEY REPORT ON 3493 02:07:15,542 --> 02:07:24,150 AGENCY'S ACTIVITIES FROM 2023. 3494 02:07:24,150 --> 02:07:29,823 3495 02:07:29,823 --> 02:07:31,891 AGAIN, GOOD AFTERNOON. 3496 02:07:31,891 --> 02:07:42,268 I'M TATIANA BALACHOVA. 3497 02:07:45,505 --> 02:07:53,580 I WILL GIVE BRIEF UPDATE ON 3498 02:07:53,580 --> 02:07:55,648 ICCFASD, WE HAVE NEW MEMBERS, I 3499 02:07:55,648 --> 02:07:58,184 WANT TO GIVE BRIEF SUMMARY OF 3500 02:07:58,184 --> 02:07:58,818 COMMITTEE TODAY. 3501 02:07:58,818 --> 02:08:08,561 OKAY. 3502 02:08:08,561 --> 02:08:09,429 COMMITTED TO IMPROVE 3503 02:08:09,429 --> 02:08:14,033 COMMUNICATION AND COLLABORATION 3504 02:08:14,033 --> 02:08:18,738 RELATED TO FAS D OUR THE 3505 02:08:18,738 --> 02:08:19,739 ECONOMY DISCUSSES RECENT 3506 02:08:19,739 --> 02:08:22,008 PROGRAMS AND PLAN ACTIVITIES 3507 02:08:22,008 --> 02:08:28,815 WHICH WE WILL DO DURING THE 3508 02:08:28,815 --> 02:08:29,382 YEAR. 3509 02:08:29,382 --> 02:08:33,286 PROGRAM OF FASD RECOGNIZED BY 3510 02:08:33,286 --> 02:08:33,887 UNITED STATES GOVERNMENT, YOU 3511 02:08:33,887 --> 02:08:36,689 KNOW, MORE THAN 20 YEARS AGO, 3512 02:08:36,689 --> 02:08:39,426 ALMOST 30 YEARS NOW, U.S. 3513 02:08:39,426 --> 02:08:41,394 CONGRESS ASKED INSTITUTE OF 3514 02:08:41,394 --> 02:08:43,830 MEDICINE TO DEVELOP REPORT TO 3515 02:08:43,830 --> 02:08:48,201 IMPROVE WORK ON FASD, 3516 02:08:48,201 --> 02:08:51,271 RECOMMENDING THAT INTERAGENCY 3517 02:08:51,271 --> 02:08:52,372 COMMITTEE WILL BE ESTABLISHED TO 3518 02:08:52,372 --> 02:08:53,907 COORDINATE FEDERAL EFFORTS AND 3519 02:08:53,907 --> 02:08:55,642 IMPROVE COMMUNICATION BETWEEN 3520 02:08:55,642 --> 02:08:56,543 FEDERAL AGENCIES. 3521 02:08:56,543 --> 02:09:03,216 AND THIS COMMITTEE HAS BEEN 3522 02:09:03,216 --> 02:09:05,819 SPONSORED AND CHAIRED BY NIAAA 3523 02:09:05,819 --> 02:09:06,486 SINCE 1996. 3524 02:09:06,486 --> 02:09:12,859 THIS YEAR WE HAVE A FEW MEMBERS 3525 02:09:12,859 --> 02:09:17,430 WHO WE LOST, 2023, I WANTED TO 3526 02:09:17,430 --> 02:09:20,200 RECOGNIZE ALL MEMBERS AND THEIR 3527 02:09:20,200 --> 02:09:23,703 WORK ON FASD, FIRST DR. SALLY 3528 02:09:23,703 --> 02:09:28,741 ANDERSON, ALMOST 20 YEARS WAS 3529 02:09:28,741 --> 02:09:30,810 SCIENTIFIC COORDINATOR FOR 3530 02:09:30,810 --> 02:09:35,381 ICCFASD, CONTRIBUTION WAS 3531 02:09:35,381 --> 02:09:35,715 AMAZING. 3532 02:09:35,715 --> 02:09:36,716 WE LOST SALLY ANDERSON, WE 3533 02:09:36,716 --> 02:09:38,551 REMEMBER HER WORK AND WILL CARRY 3534 02:09:38,551 --> 02:09:40,553 ON HER WORK. 3535 02:09:40,553 --> 02:09:49,062 WE ALSO LOST ERIN BAGALMAN, 3536 02:09:49,062 --> 02:09:50,463 ALTERNATIVE REPRESENTATIVE FROM 3537 02:09:50,463 --> 02:09:53,800 COMMITTEE, PASSION TO FASD 3538 02:09:53,800 --> 02:09:59,806 SUPPORTED INVOLVEMENT ON OUR 3539 02:09:59,806 --> 02:10:00,840 COMMITTEE. 3540 02:10:00,840 --> 02:10:03,443 JB KINLACHEENY REPRESENT FROM 3541 02:10:03,443 --> 02:10:08,882 INDIAN HEALTH SERVICES, INDIAN 3542 02:10:08,882 --> 02:10:10,016 AND SUBSTANCE ABUSE PROGRAMS, 3543 02:10:10,016 --> 02:10:12,719 OUR DEAR COLLEAGUES WILL BE 3544 02:10:12,719 --> 02:10:13,920 REMEMBERED, WE APPRECIATE WHAT 3545 02:10:13,920 --> 02:10:16,656 THEY HAVE DONE AND WILL REMEMBER 3546 02:10:16,656 --> 02:10:20,693 THEM AND IMPORTANT FOR US TO 3547 02:10:20,693 --> 02:10:21,794 CARRY OVER. 3548 02:10:21,794 --> 02:10:23,796 THIS SHOWS DIFFERENT AGENCIES 3549 02:10:23,796 --> 02:10:24,664 WHICH PARTICIPATE ON FASD AT 3550 02:10:24,664 --> 02:10:25,865 THIS TIME. 3551 02:10:25,865 --> 02:10:30,904 YOU CAN SEE IT'S REALLY A BIG 3552 02:10:30,904 --> 02:10:31,304 FORCE. 3553 02:10:31,304 --> 02:10:33,873 YOU CAN SEE MANY AGENCIES ON 3554 02:10:33,873 --> 02:10:36,142 FEDERAL GOVERNMENT WHICH REALLY 3555 02:10:36,142 --> 02:10:38,011 UNDERSTAND IMPORTANCE OF FASD 3556 02:10:38,011 --> 02:10:40,213 WORK, INCLUDED THIS IN THEIR 3557 02:10:40,213 --> 02:10:42,282 PROGRAM. 3558 02:10:42,282 --> 02:10:43,483 EACH OF THESE AGENCIES HAS 3559 02:10:43,483 --> 02:10:45,151 REPRESENTATIVE TO COMMITTEE AND 3560 02:10:45,151 --> 02:10:49,422 YOU WILL HEAR FROM EACH MEMBER 3561 02:10:49,422 --> 02:10:53,359 TO PRESENT BRIEF REPORT ON LAST 3562 02:10:53,359 --> 02:10:54,994 YEAR'S ACTIVITIES. 3563 02:10:54,994 --> 02:10:56,329 WE WILL WELCOME DEPARTMENT OF 3564 02:10:56,329 --> 02:10:57,297 EDUCATION BACK. 3565 02:10:57,297 --> 02:10:58,498 PREVIOUSLY DEPARTMENT OF 3566 02:10:58,498 --> 02:10:59,465 EDUCATION WAS VERY ACTIVE ON 3567 02:10:59,465 --> 02:11:01,134 COMMITTEE BUT WE DIDN'T HAVE A 3568 02:11:01,134 --> 02:11:05,505 MEMBER FOR FEW YEARS. 3569 02:11:05,505 --> 02:11:07,707 AND NOW WE ARE HAPPY TO WELCOME 3570 02:11:07,707 --> 02:11:09,976 DEPARTMENT OF EDUCATION BACK. 3571 02:11:09,976 --> 02:11:13,947 SO, HERE'S UPDATE ON MEMBERS. 3572 02:11:13,947 --> 02:11:16,015 DAWN LEVINSON AND TRACY KING, 3573 02:11:16,015 --> 02:11:17,417 PARTICIPATED ON COMMITTEE FOR 3574 02:11:17,417 --> 02:11:18,217 SEVERAL YEARS. 3575 02:11:18,217 --> 02:11:20,053 THEY NOW HAVE BEEN ASSIGNED 3576 02:11:20,053 --> 02:11:22,388 OTHER POSITIONS. 3577 02:11:22,388 --> 02:11:23,790 THEY HAVE BEEN PROMOTED WITHIN 3578 02:11:23,790 --> 02:11:25,758 THE INSTITUTES. 3579 02:11:25,758 --> 02:11:32,332 SO NOW WE HAVE NEW MEMBERS WHO 3580 02:11:32,332 --> 02:11:33,866 PARTICIPATE IN ICCFASD. 3581 02:11:33,866 --> 02:11:36,936 YOU HEAR REPRESENTATIVE TO 3582 02:11:36,936 --> 02:11:38,037 INTRODUCE THEMSELVES, VERY 3583 02:11:38,037 --> 02:11:43,042 BRIEFLY SAY WE ARE HAPPY TO HAVE 3584 02:11:43,042 --> 02:11:50,149 SONSY FERMIN FROM HRSA AND SHE'S 3585 02:11:50,149 --> 02:11:52,018 LICENSED CLINICAL SOCIAL WORKER, 3586 02:11:52,018 --> 02:11:55,321 SHE SERVES AS SENIOR PUBLIC 3587 02:11:55,321 --> 02:11:57,590 HEALTH ANALYST IN MATERNAL AND 3588 02:11:57,590 --> 02:11:59,525 CHILD HEALTH BUREAU, PROVIDES 3589 02:11:59,525 --> 02:12:02,528 GUIDANCE TO PROGRAMS WHICH HRSA 3590 02:12:02,528 --> 02:12:04,163 HAS RELATED TO FASD AND 3591 02:12:04,163 --> 02:12:05,698 TREATMENT FOR MATERNAL MENTAL 3592 02:12:05,698 --> 02:12:07,033 HEALTH AND SUBSTANCE USE 3593 02:12:07,033 --> 02:12:07,433 DISORDERS. 3594 02:12:07,433 --> 02:12:08,668 WELCOME ON THE BOARD. 3595 02:12:08,668 --> 02:12:19,212 WE ARE REALLY HAPPY TO HAVE YOU. 3596 02:12:20,647 --> 02:12:24,017 NEXT DR. MEGHAN O'NEILL, 3597 02:12:24,017 --> 02:12:27,086 CLINICIAN, SHE IS -- BEFORE SHE 3598 02:12:27,086 --> 02:12:30,790 JOINED IN 2023 WAS DOING 3599 02:12:30,790 --> 02:12:36,829 CLINICAL WORK AT CHILDREN'S 3600 02:12:36,829 --> 02:12:37,697 HOSPITAL IN DEVELOPMENTAL 3601 02:12:37,697 --> 02:12:38,398 PEDIATRICS, DIRECTS PROGRAM 3602 02:12:38,398 --> 02:12:40,333 RELATED DOWN SYNDROME AND 3603 02:12:40,333 --> 02:12:43,636 DEVELOPMENT OF DISABILITIES AT 3604 02:12:43,636 --> 02:12:43,836 NICHD. 3605 02:12:43,836 --> 02:12:46,272 SO WE WELCOME DR. O'NEILL AND 3606 02:12:46,272 --> 02:12:47,907 HER EXPERTISE TO COMMITTEE. 3607 02:12:47,907 --> 02:12:51,711 WE LOOK FOR WORK IN THIS FIELD. 3608 02:12:51,711 --> 02:12:55,648 AND NEXT WE HAVE CHRISTIE 3609 02:12:55,648 --> 02:12:58,151 KAVULIC AND SHE INTRODUCED 3610 02:12:58,151 --> 02:13:03,523 HERSELF THIS MORNING. 3611 02:13:03,523 --> 02:13:04,724 WE WELCOME CHRISTY, ASSOCIATE 3612 02:13:04,724 --> 02:13:07,560 DIRECTOR FOR DIVISION OF EARLY 3613 02:13:07,560 --> 02:13:09,629 CHILDHOOD AND FAMILY, IN OFFICE 3614 02:13:09,629 --> 02:13:11,497 OF SPECIAL EDUCATION PROGRAMS, 3615 02:13:11,497 --> 02:13:12,398 DEPARTMENT OF EDUCATION. 3616 02:13:12,398 --> 02:13:14,767 AND WITHIN THIS DIVISION SHE 3617 02:13:14,767 --> 02:13:18,171 OVERSEES DEVELOPMENT AND 3618 02:13:18,171 --> 02:13:19,372 MANAGEMENT DIFFERENT PROGRAMS 3619 02:13:19,372 --> 02:13:21,007 WHICH WORK AND HAVE GRANTS 3620 02:13:21,007 --> 02:13:24,844 FUNDED ON THE INDIVIDUALS WITH 3621 02:13:24,844 --> 02:13:26,946 DISABILITIES EDUCATION ACT AND 3622 02:13:26,946 --> 02:13:28,781 PREPARE EFFECTIVE PROGRAMS, 3623 02:13:28,781 --> 02:13:29,348 EVIDENCE-BASED PROGRAMS TO 3624 02:13:29,348 --> 02:13:31,084 IMPLEMENT WITHIN THE DEPARTMENT 3625 02:13:31,084 --> 02:13:32,752 OF EDUCATION. 3626 02:13:32,752 --> 02:13:36,155 SO WELCOME ON BOARD. 3627 02:13:36,155 --> 02:13:39,859 WE ALSO HAVE -- WE SPOKE TODAY 3628 02:13:39,859 --> 02:13:42,028 WE HAVE TWO NEW AD HOC MEMBERS 3629 02:13:42,028 --> 02:13:44,897 FOR THIS COMMITTEE, WHICH IS 3630 02:13:44,897 --> 02:13:48,401 VERY IMPORTANT TO US. 3631 02:13:48,401 --> 02:13:51,804 CJ LUTKE AND JAN LUTKE, BOTH 3632 02:13:51,804 --> 02:13:54,307 ONLINE, WE LOOK FORWARD TO THEM 3633 02:13:54,307 --> 02:13:55,308 PARTICIPATING IN DISCUSSIONS AND 3634 02:13:55,308 --> 02:13:57,810 HEAR VIEWS AND OPINIONS. 3635 02:13:57,810 --> 02:13:58,678 AND ALTERNATE REPRESENTATIVES, 3636 02:13:58,678 --> 02:14:01,114 I'M NOT GOING TO INTRODUCE EACH 3637 02:14:01,114 --> 02:14:02,849 OF THEM BECAUSE THEY INTRODUCED 3638 02:14:02,849 --> 02:14:03,816 THEMSELVES THIS MORNING BUT I 3639 02:14:03,816 --> 02:14:11,924 WANTED TO SAY THAT WE HAVE 3640 02:14:11,924 --> 02:14:12,692 CONTACT INFORMATION FOR EACH 3641 02:14:12,692 --> 02:14:13,893 MEMBER ONLINE. 3642 02:14:13,893 --> 02:14:15,428 WELCOME TO EVERYBODY, WELCOME TO 3643 02:14:15,428 --> 02:14:19,031 THE PUBLIC, TO ACCESS THIS 3644 02:14:19,031 --> 02:14:20,333 INFORMATION, WE WANT TO HEAR 3645 02:14:20,333 --> 02:14:22,535 FROM YOU AND LOOK FORWARD TO 3646 02:14:22,535 --> 02:14:24,737 YOUR COMMENTS AND QUESTIONS. 3647 02:14:24,737 --> 02:14:26,706 WE HAVE MANY AGENCIES WHICH DO 3648 02:14:26,706 --> 02:14:29,776 VERY DIFFERENT WORK RELATED TO 3649 02:14:29,776 --> 02:14:32,278 FASD, AND BECAUSE CONDITIONS 3650 02:14:32,278 --> 02:14:33,146 REALLY COMPLICATED AND INVOLVE 3651 02:14:33,146 --> 02:14:34,814 DIFFERENT ASPECTS OF LIFE, YOU 3652 02:14:34,814 --> 02:14:37,984 CAN SEE ALL THE DIFFERENT AREAS 3653 02:14:37,984 --> 02:14:39,719 WHICH INVOLVED AND ALL THESE 3654 02:14:39,719 --> 02:14:41,487 AREAS INVOLVED AND CAN BE 3655 02:14:41,487 --> 02:14:46,859 REPRESENTED IN WORK WHICH 3656 02:14:46,859 --> 02:14:48,594 MEMBERS OF ICCFASD DO. 3657 02:14:48,594 --> 02:14:50,229 AT TIMES WE DEVELOP SPECIAL 3658 02:14:50,229 --> 02:14:53,099 FOCUSED WORKING GROUPS, AND THIS 3659 02:14:53,099 --> 02:14:55,067 TIME WE HAVE SCREENING AND BRIEF 3660 02:14:55,067 --> 02:14:56,602 INTERVENTION FOR PREGNANT AND 3661 02:14:56,602 --> 02:14:59,505 POSTPARTUM PEOPLE WORKING GROUP, 3662 02:14:59,505 --> 02:15:01,073 ESTABLISHED IN 2021. 3663 02:15:01,073 --> 02:15:03,609 IT WAS INITIATED BY CDC MEMBERS. 3664 02:15:03,609 --> 02:15:05,011 AND YOU CAN SEE OBJECTIVES OF 3665 02:15:05,011 --> 02:15:06,779 THIS GROUP ON THIS SLIDE. 3666 02:15:06,779 --> 02:15:09,048 YOU CAN SEE AGENCIES WHICH 3667 02:15:09,048 --> 02:15:12,685 CURRENTLY PARTICIPATE IN THIS 3668 02:15:12,685 --> 02:15:15,288 GROUP, AND NIAAA AND CDC 3669 02:15:15,288 --> 02:15:17,523 REPRESENTATIVES PROVIDE 3670 02:15:17,523 --> 02:15:20,226 LEADERSHIP FOR A GROUP. 3671 02:15:20,226 --> 02:15:30,770 VERY IMPORTANT HIGHLIGHT OF LAST 3672 02:15:31,270 --> 02:15:34,941 THREE YEARS OF ICCFASD AND 3673 02:15:34,941 --> 02:15:36,242 CARETAKERS, FRIENDS, WE SUPPORT 3674 02:15:36,242 --> 02:15:38,077 THIS MODEL, NOTHING ABOUT US 3675 02:15:38,077 --> 02:15:42,582 WITHOUT US. 3676 02:15:42,582 --> 02:15:43,683 WE'VE INVITED CHANGEMAKERS, FASD 3677 02:15:43,683 --> 02:15:45,418 CHANGE MANGERS TO PARTICIPATE IN 3678 02:15:45,418 --> 02:15:46,185 OUR MEETINGS. 3679 02:15:46,185 --> 02:15:47,954 WE HAVE REPRESENTATIVES IN 3680 02:15:47,954 --> 02:15:49,355 MEETINGS, PUBLIC MEETINGS, 3681 02:15:49,355 --> 02:15:50,690 EXECUTIVE MEETINGS, IN LAST 3682 02:15:50,690 --> 02:15:52,425 THREE YEARS. 3683 02:15:52,425 --> 02:15:57,129 AND FROM THAT WE LEARN HOW MUCH 3684 02:15:57,129 --> 02:15:58,130 MORE IMPORTANT AND VERY 3685 02:15:58,130 --> 02:15:59,232 DIFFERENT INFORMATION WE RECEIVE 3686 02:15:59,232 --> 02:16:03,703 WHEN WE SPEAK WITH PEOPLE WHO 3687 02:16:03,703 --> 02:16:05,238 HAVE EXPERIENCES THROUGH THEIR 3688 02:16:05,238 --> 02:16:06,639 LIVES. 3689 02:16:06,639 --> 02:16:07,440 WE BELIEVE IT'S CRITICALLY 3690 02:16:07,440 --> 02:16:09,609 IMPORTANT BECAUSE OF THIS WE 3691 02:16:09,609 --> 02:16:14,213 HAVE NOW AD HOC MEMBERS AND WE 3692 02:16:14,213 --> 02:16:15,281 WILL CONTINUE THIS DIALOGUE, WE 3693 02:16:15,281 --> 02:16:15,982 INVITE EVERYBODY TO PARTICIPATE 3694 02:16:15,982 --> 02:16:18,484 AND GET IN TOUCH WITH US. 3695 02:16:18,484 --> 02:16:20,219 I LISTED EVERYONE WHO 3696 02:16:20,219 --> 02:16:21,754 PARTICIPATED, NAMES OF PEOPLE 3697 02:16:21,754 --> 02:16:23,389 WHO PARTICIPATED IN OUR 3698 02:16:23,389 --> 02:16:25,491 MEETINGS, WE APPRECIATE EACH OF 3699 02:16:25,491 --> 02:16:27,593 YOU AND WE ALSO APPRECIATE 3700 02:16:27,593 --> 02:16:31,297 EVERYBODY WHO IS ON VIDEOCAST 3701 02:16:31,297 --> 02:16:32,732 AND WILLING TO SUBMIT US 3702 02:16:32,732 --> 02:16:36,102 COMMENTS AND QUESTIONS. 3703 02:16:36,102 --> 02:16:37,403 INFORMATION ABOUT ICCFASD IS ON 3704 02:16:37,403 --> 02:16:39,839 THE WEBSITE. 3705 02:16:39,839 --> 02:16:41,674 PLEASE GET IN TOUCH, ASK FOR ANY 3706 02:16:41,674 --> 02:16:43,209 HELP, ASK FOR ANY COMMENTS, ASK 3707 02:16:43,209 --> 02:16:45,945 TO COME TO OUR MEETINGS. 3708 02:16:45,945 --> 02:16:48,915 WE WELCOME YOUR COMMENTS AND DO 3709 02:16:48,915 --> 02:16:52,318 BELIEVE THAT OUR MEMBERS HAVE 3710 02:16:52,318 --> 02:16:53,719 REALLY VERY BROAD AREAS OF WORK 3711 02:16:53,719 --> 02:17:03,696 WHICH CAN HELP US TO ADDRESS 3712 02:17:03,696 --> 02:17:05,498 THIS CONDITION. 3713 02:17:05,498 --> 02:17:07,767 TO SAVE TIME, WE'RE NOT TAKING 3714 02:17:07,767 --> 02:17:10,036 QUESTIONS, BUT AFTER EACH FOUR 3715 02:17:10,036 --> 02:17:11,804 PRESENTATIONS WE HAVE TIME FOR 3716 02:17:11,804 --> 02:17:12,104 DISCUSSION. 3717 02:17:12,104 --> 02:17:13,572 WE WILL GET BACK TO DISCUSSION, 3718 02:17:13,572 --> 02:17:16,075 SO PLEASE HAVE QUESTIONS TO ME 3719 02:17:16,075 --> 02:17:18,577 AND MEMBERS FOR DISCUSSION. 3720 02:17:18,577 --> 02:17:21,414 WITH THAT, I'M GOING TO CALL FOR 3721 02:17:21,414 --> 02:17:24,383 MEMBERS TO REPORT ON ACTIVITIES 3722 02:17:24,383 --> 02:17:28,220 FROM 2023, AND HERE IS REMINDER, 3723 02:17:28,220 --> 02:17:29,355 SEND LIVE FEEDBACK, YOU SEE THIS 3724 02:17:29,355 --> 02:17:30,856 BOX ON MY SLIDE. 3725 02:17:30,856 --> 02:17:35,995 THE SAME LITTLE BOX IS ON 3726 02:17:35,995 --> 02:17:36,996 VIDEOCAST, SUBMIT YOUR QUESTIONS 3727 02:17:36,996 --> 02:17:37,964 AND COMMENTS. 3728 02:17:37,964 --> 02:17:42,034 WITH THAT, WE WILL BEGIN WITH 3729 02:17:42,034 --> 02:17:46,639 OUR FIRST PRESENTATION, AND ALSO 3730 02:17:46,639 --> 02:17:49,175 PRESENTATIONS OF KRISTINA WEST 3731 02:17:49,175 --> 02:17:49,809 FROM ASPE. 3732 02:17:49,809 --> 02:17:50,028 WELCOME. 3733 02:17:55,842 --> 02:17:56,976 >> HELLO, EVERYONE. 3734 02:17:56,976 --> 02:17:59,679 WHILE WE'RE DOING OUR SLIDES, I 3735 02:17:59,679 --> 02:18:02,282 WANT TO START BY -- I PRESENTED 3736 02:18:02,282 --> 02:18:03,750 MYSELF EARLIER, BUT I'M HAPPY TO 3737 02:18:03,750 --> 02:18:07,220 BE HERE TODAY TO TELL YOU ABOUT 3738 02:18:07,220 --> 02:18:11,958 OUR WORK ON ALCOHOL AND RELATED 3739 02:18:11,958 --> 02:18:12,392 SUBSTANCES. 3740 02:18:12,392 --> 02:18:18,231 MOST OF THE WORK MY OFFICE DOES 3741 02:18:18,231 --> 02:18:20,600 SPANS THE SUBSTANCES THAT WOMEN 3742 02:18:20,600 --> 02:18:24,270 AND INFANTS ARE EXPOSED TO. 3743 02:18:24,270 --> 02:18:27,273 I'LL BE TALKING TO YOU TODAY AND 3744 02:18:27,273 --> 02:18:30,476 A COUPLE POLICY INITIATIVES 3745 02:18:30,476 --> 02:18:36,716 AROUND AREA OF MATERNAL HEALTH 3746 02:18:36,716 --> 02:18:42,388 SPECIFICALLY. 3747 02:18:42,388 --> 02:18:48,961 SO, I AM IN THE OFFICE OF 3748 02:18:48,961 --> 02:18:50,063 ASSISTANT SECRETARY FOR PLANNING 3749 02:18:50,063 --> 02:18:52,465 AN EVALUATION, AN OFFICE PRIMARY 3750 02:18:52,465 --> 02:18:56,169 FUNCTION IS TO ADVISE THE 3751 02:18:56,169 --> 02:18:58,805 SECRETARY ON POLICY ON 3752 02:18:58,805 --> 02:18:59,439 EVIDENCE-BASED POLICYMAKING, SO 3753 02:18:59,439 --> 02:19:05,378 A LOT OF THE WORK THAT WE DO IS 3754 02:19:05,378 --> 02:19:08,114 AROUND COORDINATING INITIATIVES 3755 02:19:08,114 --> 02:19:11,877 ACROSS THE DEPARTMENT, THE HHS, 3756 02:19:15,469 --> 02:19:19,640 AREA, AND SERVE AS FORUM TO 3757 02:19:19,640 --> 02:19:21,609 COORDINATE AND CONNECT FEDERAL 3758 02:19:21,609 --> 02:19:27,181 EXPERTS AND AGENCIES ON THIS 3759 02:19:27,181 --> 02:19:27,815 TOPIC. 3760 02:19:27,815 --> 02:19:30,451 SO, WE HAVE REVIEWED AND 3761 02:19:30,451 --> 02:19:33,520 PROVIDED TECHNICAL ASSISTANCE ON 3762 02:19:33,520 --> 02:19:39,460 DRAFT LEGISLATION. 3763 02:19:39,460 --> 02:19:42,096 CONGRESS REACHES US FOR 3764 02:19:42,096 --> 02:19:44,598 TECHNICAL ASSISTANCE. 3765 02:19:44,598 --> 02:19:46,600 WE PARTICIPATE IN ICCFASD AND 3766 02:19:46,600 --> 02:19:49,203 INTERAGENCY WORK GROUP ON 3767 02:19:49,203 --> 02:19:51,639 SCREENING AND BRIEF INTERVENTION 3768 02:19:51,639 --> 02:19:53,374 THAT TATIANA MENTIONED WITHIN 3769 02:19:53,374 --> 02:19:56,543 THE ICCFASD, I MENTIONED THE 3770 02:19:56,543 --> 02:20:00,381 WORK GROUP THAT WE LEAD. 3771 02:20:00,381 --> 02:20:02,349 AND MOST RECENTLY, HHS HAS 3772 02:20:02,349 --> 02:20:07,688 STARTED A TASK FORCE ON MATERNAL 3773 02:20:07,688 --> 02:20:08,922 MENTAL HEALTH, SO OVER THE LAST 3774 02:20:08,922 --> 02:20:12,826 THREE TO FOUR MONTHS THE TASK 3775 02:20:12,826 --> 02:20:15,129 FORCE -- THE TASK FORCE IS -- 3776 02:20:15,129 --> 02:20:17,231 INCLUDES FEDERAL AND NON-FEDERAL 3777 02:20:17,231 --> 02:20:21,935 MEMBERS, IT'S A FACA. 3778 02:20:21,935 --> 02:20:26,073 AND IT STARTED WITH THE 2023 3779 02:20:26,073 --> 02:20:28,709 CONSOLIDATED APPROPRIATIONS ACT. 3780 02:20:28,709 --> 02:20:31,645 BUT IT'S GOING TO INCLUDE A 3781 02:20:31,645 --> 02:20:34,615 NATIONAL STRATEGY AND REPORT OF 3782 02:20:34,615 --> 02:20:36,050 BEST PRACTICES, IT IS CALLED 3783 02:20:36,050 --> 02:20:37,685 MATERNAL MENTAL HEALTH BECAUSE 3784 02:20:37,685 --> 02:20:38,986 THAT'S WHAT THE LEGISLATION 3785 02:20:38,986 --> 02:20:42,156 CALLED FOR BUT IT DOES INCLUDE 3786 02:20:42,156 --> 02:20:43,590 SUBSTANCE USE DISORDER. 3787 02:20:43,590 --> 02:20:47,961 IT'S LED BY SAMHSA AND OASH, AND 3788 02:20:47,961 --> 02:20:53,434 AS WE PARTICIPATE -- ASPE 3789 02:20:53,434 --> 02:20:54,635 PARTICIPATES AS WELL, THERE'S A 3790 02:20:54,635 --> 02:20:55,836 STRATEGY RELEASED THIS MONTH 3791 02:20:55,836 --> 02:21:03,077 WHERE WE INCLUDE SUBSTANCE USE 3792 02:21:03,077 --> 02:21:04,044 DISORDER AS WELL. 3793 02:21:04,044 --> 02:21:06,880 NEXT I WANT TO TALK ABOUT THE 3794 02:21:06,880 --> 02:21:09,116 STUDY THAT WE PUBLISHED RECENTLY 3795 02:21:09,116 --> 02:21:12,453 THAT WAS INCLUDED IN THE JOURNAL 3796 02:21:12,453 --> 02:21:14,755 OF MATERNAL AND CHILD HEALTH 3797 02:21:14,755 --> 02:21:17,191 SPECIAL ISSUE ON PRENATAL 3798 02:21:17,191 --> 02:21:21,995 SUBSTANCE USE EXPOSURES, A STUDY 3799 02:21:21,995 --> 02:21:25,833 THAT LOOKED AT MATERNAL -- AT 3800 02:21:25,833 --> 02:21:29,570 NEONATAL ABSTINENCE SYNDROME AND 3801 02:21:29,570 --> 02:21:31,972 PRENATAL SUBSTANCE EXPOSURE AND 3802 02:21:31,972 --> 02:21:35,876 THAT INCLUDED ALCOHOL AS WELL AS 3803 02:21:35,876 --> 02:21:38,846 OPIOIDS, AND OTHER SUBSTANCES. 3804 02:21:38,846 --> 02:21:45,853 SO, IN THE GRAPH ON THE LEFT 3805 02:21:45,853 --> 02:21:46,520 ON THE TOP PRENATAL SUBSTANCE 3806 02:21:46,520 --> 02:21:47,721 EXPOSURES WHICH FOR THE FIVE 3807 02:21:47,721 --> 02:21:52,526 YEARS OF DATA THAT WE HAD FROM 3808 02:21:52,526 --> 02:21:56,196 2016 TO 2020 WE SAW A CONSISTENT 3809 02:21:56,196 --> 02:21:59,233 INCREASE ACROSS ALL STATES. 3810 02:21:59,233 --> 02:22:01,635 THIS IS USING MEDICAID DATA. 3811 02:22:01,635 --> 02:22:03,604 AND WHERE WE KNOW A LARGE AMOUNT 3812 02:22:03,604 --> 02:22:05,572 OF OUR POPULATION IS BEING 3813 02:22:05,572 --> 02:22:07,841 SERVED, OF THIS POPULATION IS 3814 02:22:07,841 --> 02:22:08,509 BEING SERVED. 3815 02:22:08,509 --> 02:22:11,011 AND ON THE BOTTOM IS NEONATAL 3816 02:22:11,011 --> 02:22:17,718 ABE ABSTINENCE DECLINE, MAYBE 3817 02:22:17,718 --> 02:22:21,255 BECAUSE OF CODING AND THE WAY 3818 02:22:21,255 --> 02:22:22,356 STATES DEFINE NEONATAL 3819 02:22:22,356 --> 02:22:24,425 ABSTINENCE SYNDROME BUT WE -- 3820 02:22:24,425 --> 02:22:26,493 GIVEN WE SEE THAT CONSISTENTLY 3821 02:22:26,493 --> 02:22:36,370 FOR THE THREE YEARS IN A ROW, IT 3822 02:22:36,370 --> 02:22:39,440 IS SIGNIFICANT AND WE THINK THAT 3823 02:22:39,440 --> 02:22:42,643 MAKES US THINK PRENATAL 3824 02:22:42,643 --> 02:22:45,145 SUBSTANCE EXPOSURE INCREASED 3825 02:22:45,145 --> 02:22:48,549 POSSIBLY BECAUSE OF INTERACTION 3826 02:22:48,549 --> 02:22:52,619 WITH OTHER SUBSTANCES. 3827 02:22:52,619 --> 02:22:54,488 ESPECIALLY 38 STATES REPORTED 3828 02:22:54,488 --> 02:22:59,059 INCREASE IN PRENATAL SUBSTANCE 3829 02:22:59,059 --> 02:23:00,394 EXPOSURE, MAJORITY OF STATES, 3830 02:23:00,394 --> 02:23:02,262 THIS UPWARD TREND IN PRENATAL 3831 02:23:02,262 --> 02:23:04,431 SUBSTANCE EXPOSURE IN MEDICAID 3832 02:23:04,431 --> 02:23:08,268 BECAUSES DATA WE USED COINCIDES 3833 02:23:08,268 --> 02:23:10,471 WITH REPORTED INCREASES IN 3834 02:23:10,471 --> 02:23:12,773 MATERNAL AND PRENATAL MARIJUANA, 3835 02:23:12,773 --> 02:23:14,408 ALCOHOL, AND OTHER ILLICIT DRUG 3836 02:23:14,408 --> 02:23:18,145 USE, IN THE NATIONAL SURVEY OF 3837 02:23:18,145 --> 02:23:22,549 DRUG USE, AND THOSE REPORTED 3838 02:23:22,549 --> 02:23:23,550 BINGE DRINKING AMONG PREGNANT 3839 02:23:23,550 --> 02:23:24,818 WOMEN, SO ONE OF THE THINGS THAT 3840 02:23:24,818 --> 02:23:28,222 NEED TO BE DONE, WE CONCLUDE IN 3841 02:23:28,222 --> 02:23:30,824 THE PAPER, THAT EARLY 3842 02:23:30,824 --> 02:23:32,259 IDENTIFICATION AND TREATMENT 3843 02:23:32,259 --> 02:23:36,296 NEED TO BE IMPROVED, 3844 02:23:36,296 --> 02:23:37,431 SPECIFICALLY UNIVERSAL SUBSTANCE 3845 02:23:37,431 --> 02:23:38,165 USE SCREENING. 3846 02:23:38,165 --> 02:23:39,800 THERE WAS A DISCUSSION EARLIER 3847 02:23:39,800 --> 02:23:44,738 ABOUT DOCTORS AND HOW THEY TALK 3848 02:23:44,738 --> 02:23:46,573 TO PATIENTS AND THE NEED TO 3849 02:23:46,573 --> 02:23:50,644 FOCUS ON POSITIVE MESSAGING AND 3850 02:23:50,644 --> 02:23:54,581 POSITIVE EFFECTS OF TREATMENT IS 3851 02:23:54,581 --> 02:23:55,048 IMPORTANT. 3852 02:23:55,048 --> 02:23:58,285 AND SECONDLY, THE OTHER THING IS 3853 02:23:58,285 --> 02:24:04,324 REALLY IMPORTANT, THIS 3854 02:24:04,324 --> 02:24:05,292 INTEGRATION OF MATERNITY CARE 3855 02:24:05,292 --> 02:24:07,628 AND EDUCATION OF OB/GYN 3856 02:24:07,628 --> 02:24:08,695 PROVIDERS AROUND THIS AREA. 3857 02:24:08,695 --> 02:24:11,865 WE HAVE AN EARLIER PAPER THAT WE 3858 02:24:11,865 --> 02:24:17,971 PUBLISHED THAT WAS LOOKING AT 3859 02:24:17,971 --> 02:24:25,012 OB/GYN CARE, I'VE ADDED 3860 02:24:25,012 --> 02:24:29,583 MATERNITY CARE, TALKING ABOUT 3861 02:24:29,583 --> 02:24:33,854 CARE THAT ADDRESSED 3862 02:24:33,854 --> 02:24:36,156 GYNECOLOGICAL NEEDS, SUBSTANCE 3863 02:24:36,156 --> 02:24:38,058 USE, MENTAL HEALTH AND OTHER 3864 02:24:38,058 --> 02:24:39,459 SOCIAL SERVICE NEEDS, STRESSORS, 3865 02:24:39,459 --> 02:24:40,427 ESPECIALLY BECAUSE LARGE 3866 02:24:40,427 --> 02:24:43,730 PROPORTION OF WOMEN WITH 3867 02:24:43,730 --> 02:24:47,334 SUBSTANCE USE ARE ALSO SURVIVORS 3868 02:24:47,334 --> 02:24:57,844 OF TRAUMA AND HAVE EXPERIENCED 3869 02:24:59,212 --> 02:24:59,413 VIOLENCE. 3870 02:24:59,413 --> 02:25:01,782 AND SO THIS IS TO CONCLUDE WHAT 3871 02:25:01,782 --> 02:25:05,285 WE HAVE DONE BUT WE CONTINUE TO 3872 02:25:05,285 --> 02:25:07,888 FOLLOW THIS TOPIC. 3873 02:25:07,888 --> 02:25:10,857 AND AS I MENTIONED, HHS WILL BE 3874 02:25:10,857 --> 02:25:12,492 RELEASING MATERNAL MENTAL HEALTH 3875 02:25:12,492 --> 02:25:13,927 STRATEGY THIS MONTH, AND I WANT 3876 02:25:13,927 --> 02:25:16,196 TO POINT OUT THAT'S GOING TO BE 3877 02:25:16,196 --> 02:25:19,399 A LIVING DOCUMENT THAT WILL BE 3878 02:25:19,399 --> 02:25:22,135 UPDATED EVERY YEAR, FOR THE NEXT 3879 02:25:22,135 --> 02:25:24,304 FIVE YEARS, THAT'S WHAT THE 3880 02:25:24,304 --> 02:25:25,405 STATUTE MANDATES. 3881 02:25:25,405 --> 02:25:28,542 SO THERE WILL BE AN OPPORTUNITY 3882 02:25:28,542 --> 02:25:33,814 TO REVISE AND THINK MORE ABOUT 3883 02:25:33,814 --> 02:25:34,915 ALCOHOL PREVENTION, TREATMENT, 3884 02:25:34,915 --> 02:25:35,248 AND RESEARCH. 3885 02:25:35,248 --> 02:25:45,092 THANK YOU. 3886 02:25:45,092 --> 02:25:47,728 >> NOW WE HAVE NEXT 3887 02:25:47,728 --> 02:25:50,130 PRESENTATION, WE'RE GETTING 3888 02:25:50,130 --> 02:25:52,566 READY I WANT TO RECOGNIZE TO 3889 02:25:52,566 --> 02:25:57,738 VIDEOCAST WE RECEIVE YOUR 3890 02:25:57,738 --> 02:26:01,141 COMMENTS AT SOME POINT, AUDIO 3891 02:26:01,141 --> 02:26:03,010 WAS CUT, MAYBE THEY ALREADY FIX 3892 02:26:03,010 --> 02:26:05,412 IT, I JUST CANNOT SEE IT. 3893 02:26:05,412 --> 02:26:07,714 BUT WE DO HAVE RECORDING FROM 3894 02:26:07,714 --> 02:26:10,117 ZOOM SO WHEN VIDEOCAST WILL BE 3895 02:26:10,117 --> 02:26:12,753 PUBLISHED, IN I THINK FEW DAYS 3896 02:26:12,753 --> 02:26:16,390 OR ONE WEEK ONLINE, YOU WILL SEE 3897 02:26:16,390 --> 02:26:18,125 PRESENTATION SLIDES AND YOU WILL 3898 02:26:18,125 --> 02:26:20,427 SEE, YOU CAN HEAR WELL. 3899 02:26:20,427 --> 02:26:24,798 SO JUST TO -- IF YOU MISSED 3900 02:26:24,798 --> 02:26:25,432 SOMETHING IN CHRISTINA'S 3901 02:26:25,432 --> 02:26:26,767 PRESENTATION YOU CAN GO BACK AND 3902 02:26:26,767 --> 02:26:28,068 SEE IT. 3903 02:26:28,068 --> 02:26:28,969 I APOLOGIZE FOR TECHNICAL 3904 02:26:28,969 --> 02:26:31,905 ISSUES, THANK YOU FOR YOUR 3905 02:26:31,905 --> 02:26:32,439 FEEDBACK. 3906 02:26:32,439 --> 02:26:33,740 HOPEFULLY IT'S FIXED. 3907 02:26:33,740 --> 02:26:36,176 JUST ALSO WANTED TO TELL, WE 3908 02:26:36,176 --> 02:26:39,112 PLANNED TO HAVE PRESENTATION 3909 02:26:39,112 --> 02:26:39,880 FROM ADMINISTRATION FOR 3910 02:26:39,880 --> 02:26:43,183 COMMUNITY LIVING. 3911 02:26:43,183 --> 02:26:47,554 WE DON'T HAVE AMANDA AMANDA 3912 02:26:47,554 --> 02:26:48,889 REICHARD WITH US TODAY, 3913 02:26:48,889 --> 02:26:50,190 EMERGENCY SHE COULDN'T COME. 3914 02:26:50,190 --> 02:26:52,192 FEEL FREE TO GET IN TOUCH, VERY 3915 02:26:52,192 --> 02:26:53,827 IMPORTANT AGENCY, WE LOOK 3916 02:26:53,827 --> 02:26:58,098 FORWARD TO CONTINUE WORKING WITH 3917 02:26:58,098 --> 02:27:03,470 AMANDA ON ADMINISTRATION FOR 3918 02:27:03,470 --> 02:27:04,471 COMMUNITY LIVING PARTICIPATION. 3919 02:27:04,471 --> 02:27:06,006 SO STAY ON BOARD, FEEL FREE TO 3920 02:27:06,006 --> 02:27:07,107 GET IN TOUCH. 3921 02:27:07,107 --> 02:27:11,278 ALL RIGHT, NOW WE'RE READY FOR 3922 02:27:11,278 --> 02:27:13,980 NEXT PRESENTATION. 3923 02:27:13,980 --> 02:27:16,516 SHARON, THIS IS YOU. 3924 02:27:16,516 --> 02:27:17,851 ADMINISTRATION FOR CHILDREN AND 3925 02:27:17,851 --> 02:27:26,026 FAMILIES. 3926 02:27:26,026 --> 02:27:36,069 3927 02:27:39,106 --> 02:27:44,010 >> YEAH, IT WORKS, OKAY. 3928 02:27:44,010 --> 02:27:48,815 ALL RIGHT. 3929 02:27:48,815 --> 02:27:53,653 I'M SHARON NEWBURG-RINN, I WORK 3930 02:27:53,653 --> 02:27:54,554 FOR CHILDREN'S BUREAU. 3931 02:27:54,554 --> 02:27:57,924 I'VE DONE A LOT OF ANALYSIS OF 3932 02:27:57,924 --> 02:28:02,395 ALL KINDS OF DATA WE COLLECT ON 3933 02:28:02,395 --> 02:28:03,597 FOSTER CARE AND CHILDREN 3934 02:28:03,597 --> 02:28:05,565 MALTREATED, ALL OF THAT KIND OF 3935 02:28:05,565 --> 02:28:05,799 STUFF. 3936 02:28:05,799 --> 02:28:08,769 RIGHT NOW THIS IS THE MAIN FOCUS 3937 02:28:08,769 --> 02:28:09,903 OF WHAT I'M DOING. 3938 02:28:09,903 --> 02:28:13,039 I HAVE HERE, I DIDN'T HAVE VERY 3939 02:28:13,039 --> 02:28:14,908 MANY SLIDES. 3940 02:28:14,908 --> 02:28:16,643 IT'S ON THIS ONE SHEET OF PAPER, 3941 02:28:16,643 --> 02:28:18,411 BOTH SIDES, WHAT I'VE BEEN DOING 3942 02:28:18,411 --> 02:28:18,712 LATELY. 3943 02:28:18,712 --> 02:28:21,782 BUT I THINK YOU CAN READ THAT BY 3944 02:28:21,782 --> 02:28:23,984 LOOKING AT IT AND SEEING WHAT 3945 02:28:23,984 --> 02:28:24,551 WE'VE DONE LATELY. 3946 02:28:24,551 --> 02:28:26,052 I WANT TO TELL YOU THE IMPORTANT 3947 02:28:26,052 --> 02:28:27,587 STUFF, YOU KNOW? 3948 02:28:27,587 --> 02:28:30,991 BECAUSE I THINK IT RELATES TO 3949 02:28:30,991 --> 02:28:32,959 WHAT OTHER PEOPLE HAVE BEEN 3950 02:28:32,959 --> 02:28:34,828 SAYING TODAY. 3951 02:28:34,828 --> 02:28:38,865 AND I JUST GRAB RIGHT ONTO IT 3952 02:28:38,865 --> 02:28:39,933 WHEN I HEAR IT. 3953 02:28:39,933 --> 02:28:41,935 PEOPLE ARE TALKING ABOUT PEOPLE 3954 02:28:41,935 --> 02:28:43,270 BEING AFRAID THAT THEIR CHILDREN 3955 02:28:43,270 --> 02:28:44,437 WILL BE TAKEN AWAY. 3956 02:28:44,437 --> 02:28:46,339 WELL, TURNS OUT THERE'S A VERY 3957 02:28:46,339 --> 02:28:48,108 GOOD REASON FOR THAT. 3958 02:28:48,108 --> 02:28:50,310 OVER ONE-THIRD OF THE STATES NOW 3959 02:28:50,310 --> 02:28:53,246 HAVE IT WRITTEN INTO THEIR LAWS 3960 02:28:53,246 --> 02:28:56,183 THAT IF THE CHILD HAS BEEN 3961 02:28:56,183 --> 02:28:57,317 PRENATALLY EXPOSED, GOOD ENOUGH 3962 02:28:57,317 --> 02:28:58,819 REASON, CAN YOU TAKE THAT KID 3963 02:28:58,819 --> 02:29:00,287 OUT OF THE HOME -- YOU CAN TAKE 3964 02:29:00,287 --> 02:29:02,222 THAT KID OUT OF THE HOME, THAT'S 3965 02:29:02,222 --> 02:29:07,494 IN OVER ONE-THIRD OF THE STATES. 3966 02:29:07,494 --> 02:29:08,662 AND SO THERE IS A GOOD REASON 3967 02:29:08,662 --> 02:29:14,301 FOR THEM TO BE WORRIED. 3968 02:29:14,301 --> 02:29:14,801 LET'S SEE. 3969 02:29:14,801 --> 02:29:20,173 I HAVE ALL THESE SCRIBBLED 3970 02:29:20,173 --> 02:29:21,074 NOTES, DOESN'T LOOK AS NEAT AS 3971 02:29:21,074 --> 02:29:22,809 THE REST OF THE STUFF I WROTE. 3972 02:29:22,809 --> 02:29:25,445 A LOT OF PEOPLE ALSO THINK 3973 02:29:25,445 --> 02:29:26,880 THAT -- I'VE TALKED WITH SOCIAL 3974 02:29:26,880 --> 02:29:28,481 WORKERS ACROSS THE COUNTRY. 3975 02:29:28,481 --> 02:29:31,451 THEY SAY, I DON'T HAVE ANY KIDS, 3976 02:29:31,451 --> 02:29:34,054 YOU KNOW, IN MY AGENCY WHO HAVE 3977 02:29:34,054 --> 02:29:35,088 THIS PROBLEM, BECAUSE I WOULD 3978 02:29:35,088 --> 02:29:35,922 KNOW IF THEY DID. 3979 02:29:35,922 --> 02:29:40,427 I'D BE ABLE TO LOOK AT THEM AND 3980 02:29:40,427 --> 02:29:40,861 TELL. 3981 02:29:40,861 --> 02:29:41,761 NO, YOU CAN'T. 3982 02:29:41,761 --> 02:29:43,063 THERE'S NOT THAT MANY THAT YOU 3983 02:29:43,063 --> 02:29:45,799 CAN REALLY LOOK AT AND KNOW THAT 3984 02:29:45,799 --> 02:29:47,667 THEY ACTUALLY HAVE DAMAGE TO 3985 02:29:47,667 --> 02:29:51,404 THEIR DEAR BRAINS BECAUSE OF 3986 02:29:51,404 --> 02:29:51,605 THIS. 3987 02:29:51,605 --> 02:29:53,240 AND SO, BUT IT'S A BIG PROBLEM 3988 02:29:53,240 --> 02:29:55,542 IN THE AREA BECAUSE PEOPLE JUST 3989 02:29:55,542 --> 02:29:57,277 DON'T TAKE IT SERIOUSLY. 3990 02:29:57,277 --> 02:30:06,386 THEY DON'T THINK THAT IT'S AN 3991 02:30:06,386 --> 02:30:08,021 ISSUE. 3992 02:30:08,021 --> 02:30:10,323 AND PEDIATRICIAN IRA CHASNOW WAS 3993 02:30:10,323 --> 02:30:13,460 LOOKING AT KIDS IN FOSTER CARE 3994 02:30:13,460 --> 02:30:14,794 FOR YEARS, COULDN'T FIGURE OUT 3995 02:30:14,794 --> 02:30:17,397 WHAT WAS GOING ON, GETTING 3996 02:30:17,397 --> 02:30:18,365 VARIOUS SORTS OF MEDICINES, 3997 02:30:18,365 --> 02:30:21,568 LET'S SEE, DO THEY HAVE ADHD, 3998 02:30:21,568 --> 02:30:24,871 THIS OR THAT, GETTING VARIOUS 3999 02:30:24,871 --> 02:30:28,241 KINDS OF DRUGS, YOU KNOW, 4000 02:30:28,241 --> 02:30:30,477 RITALIN IF THEY HAVE ADHD OR 4001 02:30:30,477 --> 02:30:31,778 ANXIOUS THEY HAVE ANXIETY AND 4002 02:30:31,778 --> 02:30:33,546 GIVE THEM SOMETHING ELSE, XANAX 4003 02:30:33,546 --> 02:30:34,748 OR SOMETHING LIKE THAT. 4004 02:30:34,748 --> 02:30:35,615 AND THEY JUST COULDN'T FIGURE 4005 02:30:35,615 --> 02:30:39,119 OUT WHAT WAS GOING ON WITH THEM. 4006 02:30:39,119 --> 02:30:41,187 AND IN OVER 80% OF THE CASES 4007 02:30:41,187 --> 02:30:43,390 WHERE THESE KIDS WERE REFERRED 4008 02:30:43,390 --> 02:30:46,226 TO HIM, THEY HAD NOT BEEN 4009 02:30:46,226 --> 02:30:47,527 DIAGNOSED WHEN THEY ENTERED 4010 02:30:47,527 --> 02:30:48,728 FOSTER CARE. 4011 02:30:48,728 --> 02:30:50,363 THAT'S A LOT. 4012 02:30:50,363 --> 02:30:52,899 SO, IT'S A BIG PROBLEM IN THE 4013 02:30:52,899 --> 02:30:53,900 FOSTER CARE SYSTEM. 4014 02:30:53,900 --> 02:30:58,905 NOT TO HAVE THIS RECOGNIZED. 4015 02:30:58,905 --> 02:31:00,340 AND THE OTHER THING ABOUT IT 4016 02:31:00,340 --> 02:31:04,044 THAT'S A VERY BIG PROBLEM IN THE 4017 02:31:04,044 --> 02:31:06,346 CHILD WELFARE FIELD IS THESE 4018 02:31:06,346 --> 02:31:09,182 KIDS ARE KIND OF CHALLENGING FOR 4019 02:31:09,182 --> 02:31:09,749 THE PARENTS. 4020 02:31:09,749 --> 02:31:14,688 AND PART OF THE PROBLEM IS, THEY 4021 02:31:14,688 --> 02:31:15,789 DON'T UNDERSTAND. 4022 02:31:15,789 --> 02:31:17,090 AND THEY CAN APPEAR VERY MUCH 4023 02:31:17,090 --> 02:31:19,826 LIKE THEY ARE JUST MISBEHAVING. 4024 02:31:19,826 --> 02:31:23,463 LIKE, YOU KNOW, EVEN SAY IN THE 4025 02:31:23,463 --> 02:31:25,432 HOME, MOM SAYS HANG YOUR JACKET 4026 02:31:25,432 --> 02:31:26,733 ON THE COAT RACK WHEN YOU COME 4027 02:31:26,733 --> 02:31:28,234 IN THE HOUSE. 4028 02:31:28,234 --> 02:31:29,469 AND THEY FORGET IT EVERY DAY. 4029 02:31:29,469 --> 02:31:31,237 I MEAN, I HAVE TWO KIDS THAT 4030 02:31:31,237 --> 02:31:32,839 DON'T HAVE THAT PROBLEM AND I'VE 4031 02:31:32,839 --> 02:31:35,809 SEEN THAT KIND OF THING HAPPEN 4032 02:31:35,809 --> 02:31:36,242 MYSELF. 4033 02:31:36,242 --> 02:31:41,181 BUT THESE KIDS FORGET THE RULES. 4034 02:31:41,181 --> 02:31:42,482 AND ANOTHER THING IS -- THAT 4035 02:31:42,482 --> 02:31:45,552 TENDS TO MAKE THE PARENTS ANGRY, 4036 02:31:45,552 --> 02:31:46,953 FOSTER PARENTS TOO, BECAUSE THEY 4037 02:31:46,953 --> 02:31:50,690 LOOK AT IT AS YOU'RE JUST 4038 02:31:50,690 --> 02:31:52,892 DEFYING ME, YOU'RE NOT -- YOU'RE 4039 02:31:52,892 --> 02:31:58,932 MISBEHAVING AND REALLY DON'T GET 4040 02:31:58,932 --> 02:31:59,299 IT. 4041 02:31:59,299 --> 02:32:00,900 SO, THERE ARE A LOT OF THINGS 4042 02:32:00,900 --> 02:32:03,737 LIKE THAT THAT LEAD US TO THINK 4043 02:32:03,737 --> 02:32:05,005 WE NEED TO DO SOMETHING ELSE, 4044 02:32:05,005 --> 02:32:07,374 AND SOME OF THE THINGS I'VE BEEN 4045 02:32:07,374 --> 02:32:10,210 WORKING ON ARE TALKING WITH 4046 02:32:10,210 --> 02:32:11,845 SOCIAL WORKERS AND THEIR 4047 02:32:11,845 --> 02:32:13,613 SUPERVISORS AND PARENTS AND 4048 02:32:13,613 --> 02:32:15,015 FOSTER PARENTS ACROSS THE 4049 02:32:15,015 --> 02:32:16,783 COUNTRY, AND GETTING THEIR VIEWS 4050 02:32:16,783 --> 02:32:17,984 ON WHAT'S GOING ON. 4051 02:32:17,984 --> 02:32:21,721 AND WHAT'S IMPORTANT TO THEM. 4052 02:32:21,721 --> 02:32:24,124 AND WE KNOW FROM TALKING WITH 4053 02:32:24,124 --> 02:32:25,425 SOME FOSTER PARENTS AND NEWLY 4054 02:32:25,425 --> 02:32:28,595 ADOPTIVE PARENTS THAT THEY 4055 02:32:28,595 --> 02:32:30,130 DIDN'T EVEN KNOW WHAT KIND OF 4056 02:32:30,130 --> 02:32:30,497 PROBLEM. 4057 02:32:30,497 --> 02:32:33,533 IN FACT, WE HAD SOME THAT SAID 4058 02:32:33,533 --> 02:32:35,135 TO US, WELL, YOU KNOW, THEY TOLD 4059 02:32:35,135 --> 02:32:38,238 US THEY COULDN'T TELL US THIS 4060 02:32:38,238 --> 02:32:38,538 INFORMATION. 4061 02:32:38,538 --> 02:32:42,042 IT WAS NOT LEGAL FOR THEM TO 4062 02:32:42,042 --> 02:32:44,577 TELL US, TALKED ABOUT HIPAA OR 4063 02:32:44,577 --> 02:32:45,578 SOMETHING, BUT HOW THAT THEY 4064 02:32:45,578 --> 02:32:47,981 GOING TO TAKE CARE OF THESE 4065 02:32:47,981 --> 02:32:48,181 KIDS? 4066 02:32:48,181 --> 02:32:49,949 SOME DIDN'T HAVE A CLUE. 4067 02:32:49,949 --> 02:32:51,918 THEY WENT ON GOOGLE AND FOUND 4068 02:32:51,918 --> 02:32:53,119 OUT IMPORTANT INFORMATION ABOUT 4069 02:32:53,119 --> 02:32:55,755 HOW TO DEAL WITH THIS CHILD. 4070 02:32:55,755 --> 02:32:57,157 AND IT'S REALLY CRITICAL THAT 4071 02:32:57,157 --> 02:32:59,359 THEY KNOW HOW AND I'M SURE THAT 4072 02:32:59,359 --> 02:33:00,660 YOU CAN WELL UNDERSTAND IT NOW 4073 02:33:00,660 --> 02:33:02,729 AFTER HEARING ALL THE THINGS 4074 02:33:02,729 --> 02:33:04,497 YOU'VE HEARD TODAY, IT'S VERY 4075 02:33:04,497 --> 02:33:07,467 EASY FOR A PARENT OR FOSTER 4076 02:33:07,467 --> 02:33:09,102 PARENT OR ADOPTIVE PARENT TO GET 4077 02:33:09,102 --> 02:33:10,770 ANGRY WITH THE KID BECAUSE THE 4078 02:33:10,770 --> 02:33:14,774 KID LOOKS LIKE THEY ARE BEING 4079 02:33:14,774 --> 02:33:17,077 DEFIANT WHEN THE FACT IS THEY 4080 02:33:17,077 --> 02:33:18,378 DON'T UNDERSTAND SOMETHING. 4081 02:33:18,378 --> 02:33:20,680 AND YOU CAN'T TELL THEM -- THEY 4082 02:33:20,680 --> 02:33:24,617 NEED LIKE A BACK OF TRICKS -- 4083 02:33:24,617 --> 02:33:25,919 BAG OF TRICKS. 4084 02:33:25,919 --> 02:33:27,687 DON'T TELL THIS KID TO GO 4085 02:33:27,687 --> 02:33:29,089 UPSTAIRS, BRUSH TEETH, PUT ON 4086 02:33:29,089 --> 02:33:31,291 YOUR JACKET AND GO DOWNSTAIRS 4087 02:33:31,291 --> 02:33:32,959 AND DON'T FORGET YOUR BOOKS AND 4088 02:33:32,959 --> 02:33:34,127 GET IN THE CAR. 4089 02:33:34,127 --> 02:33:37,964 THEY ARE GOING TO FORGET 4090 02:33:37,964 --> 02:33:38,231 SOMETHING. 4091 02:33:38,231 --> 02:33:39,632 AND THE PARENTS NEED TO 4092 02:33:39,632 --> 02:33:40,700 UNDERSTAND THAT. 4093 02:33:40,700 --> 02:33:41,801 AND IF THEY DO UNDERSTAND THAT, 4094 02:33:41,801 --> 02:33:43,570 THEY ARE GOING TO BE LESS LIKELY 4095 02:33:43,570 --> 02:33:44,337 TO BE ANGRY. 4096 02:33:44,337 --> 02:33:49,375 AND THEN YOU'RE GOING TO HAVE 4097 02:33:49,375 --> 02:33:51,044 LESS LIKELIHOOD THEY WILL BE MAL 4098 02:33:51,044 --> 02:33:51,911 TREATING THIS KID. 4099 02:33:51,911 --> 02:33:53,313 SO THOSE ARE SOME OF THE KINDS 4100 02:33:53,313 --> 02:33:56,282 OF THINGS THAT WE'RE WORKING ON. 4101 02:33:56,282 --> 02:33:58,785 LET ME JUST ADDRESS, LET'S SEE, 4102 02:33:58,785 --> 02:34:01,421 HOW DO I TURN THIS, THIS FIRST 4103 02:34:01,421 --> 02:34:03,289 SLIDE? 4104 02:34:03,289 --> 02:34:04,057 OKAY, NATURALLY, ALL RIGHT. 4105 02:34:04,057 --> 02:34:05,592 AND THIS IS THE ONLY ONE I'M 4106 02:34:05,592 --> 02:34:07,494 GOING TO TELL YOU MUCH ABOUT. 4107 02:34:07,494 --> 02:34:08,928 THE OTHER ARE BRAGGING ABOUT 4108 02:34:08,928 --> 02:34:10,130 WHAT WE'VE DONE LATELY. 4109 02:34:10,130 --> 02:34:15,468 BUT I WANT TO TELL YOU THAT WE 4110 02:34:15,468 --> 02:34:17,537 KNOW THAT IN FOSTER CARE, I LOOK 4111 02:34:17,537 --> 02:34:22,575 AT THE DATA EVERY DAY, AND THERE 4112 02:34:22,575 --> 02:34:26,079 ARE MORE CHILDREN OF COLOR WHO 4113 02:34:26,079 --> 02:34:28,915 ARE IN FOSTER CARE, EITHER 4114 02:34:28,915 --> 02:34:29,983 TRIBAL CHILDREN, AFRICAN 4115 02:34:29,983 --> 02:34:31,551 AMERICAN CHILDREN, AND SO FORTH, 4116 02:34:31,551 --> 02:34:33,620 WHO ARE IN FOSTER CARE. 4117 02:34:33,620 --> 02:34:36,623 AND IT'S OUT OF PROPORTION TO 4118 02:34:36,623 --> 02:34:40,527 THEIR NUMBERS IN THE GENERAL 4119 02:34:40,527 --> 02:34:40,827 POPULATION. 4120 02:34:40,827 --> 02:34:44,230 SOME PEOPLE HAVE TAKEN THIS TO 4121 02:34:44,230 --> 02:34:45,665 MEAN THAT WE'RE OVERSURVEILING 4122 02:34:45,665 --> 02:34:45,965 THEM. 4123 02:34:45,965 --> 02:34:47,433 WELL, MAYBE WE ARE 4124 02:34:47,433 --> 02:34:48,168 OVERSURVEILING THEM. 4125 02:34:48,168 --> 02:34:49,502 THERE'S SOMETHING GOING ON, AND 4126 02:34:49,502 --> 02:34:53,439 IT'S NOT A GOOD THING. 4127 02:34:53,439 --> 02:34:55,742 BUT IT ALSO COULD BE OTHER 4128 02:34:55,742 --> 02:34:56,176 THINGS. 4129 02:34:56,176 --> 02:34:58,244 IT COULD BE MAYBE THEY HAVE 4130 02:34:58,244 --> 02:35:00,013 HIGHER NEEDS BECAUSE OF 4131 02:35:00,013 --> 02:35:00,880 SOCIOECONOMIC FACTORS AND THINGS 4132 02:35:00,880 --> 02:35:01,447 LIKE THAT. 4133 02:35:01,447 --> 02:35:02,315 WE DON'T KNOW EXACTLY WHAT'S 4134 02:35:02,315 --> 02:35:03,616 GOING ON. 4135 02:35:03,616 --> 02:35:06,819 WE DO KNOW THAT IT'S NOT A GOOD 4136 02:35:06,819 --> 02:35:09,656 THING TO HAVE MORE CHILDREN OF 4137 02:35:09,656 --> 02:35:10,590 COLOR IN FOSTER CARE, NOT BE 4138 02:35:10,590 --> 02:35:12,258 ABLE TO GET TO THE BOTTOM OF IT 4139 02:35:12,258 --> 02:35:14,460 AND FIGURE OUT WHAT'S GOING ON. 4140 02:35:14,460 --> 02:35:16,763 SO, IF WE'RE TRYING TO PREVENT 4141 02:35:16,763 --> 02:35:20,400 THEM FROM GOING INTO FOSTER 4142 02:35:20,400 --> 02:35:21,267 CARE, THAT'S A BIG ISSUE. 4143 02:35:21,267 --> 02:35:23,203 HOW DO YOU DO THAT? 4144 02:35:23,203 --> 02:35:24,737 WHAT'S THE SOLUTION? 4145 02:35:24,737 --> 02:35:26,606 AND CAN YOU PROVIDE SERVICES IN 4146 02:35:26,606 --> 02:35:28,675 THE HOME? 4147 02:35:28,675 --> 02:35:32,645 NOW, ONE THING THAT IS GOOD IS 4148 02:35:32,645 --> 02:35:34,847 THAT THE CHILDREN'S BUREAU HAS 4149 02:35:34,847 --> 02:35:36,916 DECIDED, WELL, THERE'S 4150 02:35:36,916 --> 02:35:38,218 LEGISLATION FOR THIS, RATHER 4151 02:35:38,218 --> 02:35:40,520 THAN GIVING ALL THE MONEY ONLY 4152 02:35:40,520 --> 02:35:43,022 FOR FAMILIES WHO ARE TAKING IN 4153 02:35:43,022 --> 02:35:44,123 FOSTER CHILDREN. 4154 02:35:44,123 --> 02:35:46,392 YOU CAN ALSO ALLOW STATES TO USE 4155 02:35:46,392 --> 02:35:50,730 THAT SAME MONEY, THAT SAME 4156 02:35:50,730 --> 02:35:52,899 FUNDING TO DO PREVENTION 4157 02:35:52,899 --> 02:35:53,233 SERVICES. 4158 02:35:53,233 --> 02:35:57,604 SO, THAT'S A GOOD THING. 4159 02:35:57,604 --> 02:35:58,705 OH, YEAH, LAST COMMENT I HAVE 4160 02:35:58,705 --> 02:36:04,010 HERE ON THIS PAGE IS THAT THAT 4161 02:36:04,010 --> 02:36:05,411 SOUNDS TO A LOT OF CONGRESSMEN 4162 02:36:05,411 --> 02:36:10,183 LIKE THEY ARE GOING TO SAVE 4163 02:36:10,183 --> 02:36:10,850 MONEY. 4164 02:36:10,850 --> 02:36:12,619 NOT PUT THEM IN FOSTER CARE? 4165 02:36:12,619 --> 02:36:13,586 GREAT, WE'LL SAVE MONEY. 4166 02:36:13,586 --> 02:36:14,887 THAT'S NOT THE INTENT. 4167 02:36:14,887 --> 02:36:16,289 THAT'S NOT THE POINT. 4168 02:36:16,289 --> 02:36:17,624 WE'RE TRYING TO HELP THESE KIDS 4169 02:36:17,624 --> 02:36:21,561 AS MUCH AS WE CAN. 4170 02:36:21,561 --> 02:36:24,063 OKAY. 4171 02:36:24,063 --> 02:36:25,398 AND THIS JUST TELLS YOU SOME OF 4172 02:36:25,398 --> 02:36:28,568 THE STUFF THAT WE'VE BEEN 4173 02:36:28,568 --> 02:36:29,669 PUBLISHING LATELY, COLLABORATING 4174 02:36:29,669 --> 02:36:31,404 WITH CHILD WELFARE LEAGUE OF 4175 02:36:31,404 --> 02:36:33,906 AMERICA, A DOUBLE ISSUE OF THAT. 4176 02:36:33,906 --> 02:36:37,644 WE'VE DONE SOME OTHER 4177 02:36:37,644 --> 02:36:38,544 PRESENTATIONS. 4178 02:36:38,544 --> 02:36:40,280 AND INCLUDING MOST RECENTLY IN 4179 02:36:40,280 --> 02:36:43,283 SEATTLE AT THIS CONFERENCE. 4180 02:36:43,283 --> 02:36:45,618 AND WE'RE DOING A LOT OF -- 4181 02:36:45,618 --> 02:36:47,587 WE'RE GETTING TOGETHER MATERIALS 4182 02:36:47,587 --> 02:36:49,889 THAT CAN BE USED WITH SOCIAL 4183 02:36:49,889 --> 02:36:52,625 WORKERS, TO TELL THEM, HELP THEM 4184 02:36:52,625 --> 02:36:54,627 FIGURE OUT WHAT THEY NEED TO DO 4185 02:36:54,627 --> 02:36:56,129 TO HELP THESE KIDS. 4186 02:36:56,129 --> 02:36:58,564 WE ALSO HAVE A TRIBAL -- WE HAD 4187 02:36:58,564 --> 02:37:00,199 THIS BEFORE BUT WE'LL DO IT 4188 02:37:00,199 --> 02:37:02,035 AGAIN, WORKING WITH A TRIBE. 4189 02:37:02,035 --> 02:37:03,369 AND THEY ARE KIND OF DOING THEIR 4190 02:37:03,369 --> 02:37:04,570 OWN THING. 4191 02:37:04,570 --> 02:37:07,674 WE HAVE THE SAME SETS OF 4192 02:37:07,674 --> 02:37:08,841 RESEARCH QUESTIONS, BUT THEY ARE 4193 02:37:08,841 --> 02:37:10,243 DOING IT IN THEIR OWN WAY 4194 02:37:10,243 --> 02:37:13,313 BECAUSE WE'RE TRYING TO BE 4195 02:37:13,313 --> 02:37:15,281 RESPECTFUL OF THE TRIBE'S 4196 02:37:15,281 --> 02:37:16,916 CULTURE AND THEIR SPECIFIC NEEDS 4197 02:37:16,916 --> 02:37:18,651 BECAUSE IT COULD BE DIFFERENT. 4198 02:37:18,651 --> 02:37:20,753 WE ALSO HAVE SOME WEBINARS 4199 02:37:20,753 --> 02:37:22,422 COMING UP IN COLLABORATION WITH 4200 02:37:22,422 --> 02:37:23,923 THE CHILD WELFARE LEAGUE OF 4201 02:37:23,923 --> 02:37:24,390 AMERICA. 4202 02:37:24,390 --> 02:37:25,692 AND IF YOU'RE INTERESTED IN 4203 02:37:25,692 --> 02:37:26,893 FINDING OUT MORE ABOUT THOSE OR 4204 02:37:26,893 --> 02:37:29,295 WHERE YOU CAN CLICK IN ORDER TO 4205 02:37:29,295 --> 02:37:33,966 GET ON THEM, MY NAME IS ON THAT 4206 02:37:33,966 --> 02:37:34,267 FIRST SLIDE. 4207 02:37:34,267 --> 02:37:35,835 LET'S SEE. 4208 02:37:35,835 --> 02:37:37,370 AND MY E-MAIL ADDRESS, AND YOU 4209 02:37:37,370 --> 02:37:40,340 CAN JUST ASK ME AND I'LL TELL 4210 02:37:40,340 --> 02:37:42,308 YOU HOW TO CONNECT TO THOSE 4211 02:37:42,308 --> 02:37:43,309 THREE UPCOMING WEBINARS. 4212 02:37:43,309 --> 02:37:46,045 OKAY, THANKS. 4213 02:37:46,045 --> 02:37:47,914 4214 02:37:47,914 --> 02:37:49,782 >> THANK YOU VERY MUCH. 4215 02:37:49,782 --> 02:37:52,485 WE HAVE ONE MORE PRESENTATION 4216 02:37:52,485 --> 02:37:53,586 BEFORE WE HAVE DISCUSSION, 4217 02:37:53,586 --> 02:37:56,656 PLEASE HAVE YOUR QUESTIONS READY 4218 02:37:56,656 --> 02:37:58,424 FOR DISCUSSION TO ALL OUR 4219 02:37:58,424 --> 02:37:59,392 MEMBERS. 4220 02:37:59,392 --> 02:38:01,694 THANK YOU. 4221 02:38:01,694 --> 02:38:04,330 SO NEXT PRESENTATION IS FROM 4222 02:38:04,330 --> 02:38:06,632 HEALTH RESOURCES AND SERVICES 4223 02:38:06,632 --> 02:38:06,999 ADMINISTRATION. 4224 02:38:06,999 --> 02:38:10,770 SONSY FERMIN. 4225 02:38:10,770 --> 02:38:11,003 >> HI. 4226 02:38:11,003 --> 02:38:11,537 GOOD AFTERNOON. 4227 02:38:11,537 --> 02:38:13,272 I'M GLAD TO BE HERE. 4228 02:38:13,272 --> 02:38:17,009 THIS IS MY FIRST IN-PERSON 4229 02:38:17,009 --> 02:38:17,610 MEETING, ANNUAL MEETING, SO 4230 02:38:17,610 --> 02:38:18,010 THANK YOU. 4231 02:38:18,010 --> 02:38:19,412 I'M ONE OF THE NEW MEMBERS. 4232 02:38:19,412 --> 02:38:22,715 I AM A PROGRAM OFFICER FOR THE 4233 02:38:22,715 --> 02:38:27,286 SUPPORTING FETAL ALCOHOL 4234 02:38:27,286 --> 02:38:28,521 SPECTRUM DISORDER PROGRAM, 4235 02:38:28,521 --> 02:38:29,922 PLEASED TO PROVIDE UPDATES. 4236 02:38:29,922 --> 02:38:31,357 MOST OF YOU, WE'RE SHORT ON TIME 4237 02:38:31,357 --> 02:38:33,126 BUT I WANT TO TELL YOU A LITTLE 4238 02:38:33,126 --> 02:38:33,426 BIT. 4239 02:38:33,426 --> 02:38:37,263 I KNOW MOST PEOPLE ARE FAMILIAR, 4240 02:38:37,263 --> 02:38:38,264 ESPECIALLY THE PUBLIC, CDC, FDA, 4241 02:38:38,264 --> 02:38:45,371 BUT I'D LIKE TO TELL YOU ABOUT 4242 02:38:45,371 --> 02:38:45,571 HRSA. 4243 02:38:45,571 --> 02:38:47,440 TO START, HRSA WORKS ACROSS 4244 02:38:47,440 --> 02:38:48,541 DIVERSE POPULATIONS SERVING 4245 02:38:48,541 --> 02:38:54,981 BROAD FROM INFANTS TO ELDERLY, 4246 02:38:54,981 --> 02:38:59,619 AND ESPECIALLY FOR PEOPLE 4247 02:38:59,619 --> 02:39:01,220 GEOGRAPHICALLY ISOLATED, 4248 02:39:01,220 --> 02:39:03,856 ECONOMICALLY OR MEDICALLY 4249 02:39:03,856 --> 02:39:04,957 VULNERABLE INDIVIDUALS. 4250 02:39:04,957 --> 02:39:06,259 HRSA'S MISSION -- I'M SORRY. 4251 02:39:06,259 --> 02:39:06,692 OOPS, OKAY. 4252 02:39:06,692 --> 02:39:08,428 LET ME GO OVER HERE. 4253 02:39:08,428 --> 02:39:10,863 I WANTED TO LET YOU KNOW FOR A 4254 02:39:10,863 --> 02:39:12,465 SECOND, SO WHEN HRSA'S MISSION 4255 02:39:12,465 --> 02:39:14,901 IS TO IMPROVE HEALTH OUTCOME, 4256 02:39:14,901 --> 02:39:16,769 ADDRESS HEALTH DISPARITY THROUGH 4257 02:39:16,769 --> 02:39:19,172 ACCESS TO QUALITY SERVICES AND 4258 02:39:19,172 --> 02:39:21,307 SKILLED WORKFORCE AND INNOVATIVE 4259 02:39:21,307 --> 02:39:22,008 HIGH-VALUE PROGRAMS. 4260 02:39:22,008 --> 02:39:24,410 AND FOR THE SAKE OF TIME I'M 4261 02:39:24,410 --> 02:39:26,479 JUST GOING TO SHOW I WORK IN THE 4262 02:39:26,479 --> 02:39:28,481 MATERNAL CHILD AND HEALTH 4263 02:39:28,481 --> 02:39:31,217 BUREAU, AND THESE SLIDES WILL BE 4264 02:39:31,217 --> 02:39:32,618 UP ON THE WEBSITE. 4265 02:39:32,618 --> 02:39:34,587 SO JUST GIVING YOU A LITTLE BIT 4266 02:39:34,587 --> 02:39:35,455 ABOUT OUR STRATEGIC PLAN AND 4267 02:39:35,455 --> 02:39:37,423 SOME OF THE THINGS THAT WE WORK 4268 02:39:37,423 --> 02:39:38,524 WITH. 4269 02:39:38,524 --> 02:39:43,629 BUT I WANT YOU TO UNDERSTAND 4270 02:39:43,629 --> 02:39:45,665 THAT MCHB PROMOTES MENTAL HEALTH 4271 02:39:45,665 --> 02:39:47,967 AND WELL BEING FOR MATERNAL AND 4272 02:39:47,967 --> 02:39:50,036 CHILD HEALTH ACROSS A LIFESPAN 4273 02:39:50,036 --> 02:39:52,738 SUPPORTING PRINCIPLE THERE IS 4274 02:39:52,738 --> 02:39:55,408 NO HEALTH WITHOUT MENTAL HEALTH. 4275 02:39:55,408 --> 02:40:01,647 LET ME TELL YOU ABOUT MCHB. 4276 02:40:01,647 --> 02:40:05,685 AGAIN, IT'S MATERNAL/CHILD 4277 02:40:05,685 --> 02:40:07,119 HEALTH BUREAU, TO SUPPORT FETAL 4278 02:40:07,119 --> 02:40:08,254 ALCOHOL SPECTRUM DISORDER, 4279 02:40:08,254 --> 02:40:09,989 SCREENING AND INTERVENTION 4280 02:40:09,989 --> 02:40:10,223 PROGRAM. 4281 02:40:10,223 --> 02:40:17,763 OUR AWARDEES IS CALLED SAFEST 4282 02:40:17,763 --> 02:40:18,731 FIRST LEARNING COLLABORATIVE, 4283 02:40:18,731 --> 02:40:21,501 ADDRESSING THINGS KATHLEEN WAS 4284 02:40:21,501 --> 02:40:22,468 TALKING ABOUT. 4285 02:40:22,468 --> 02:40:24,537 THIS PROGRAM ADDRESSES PRIMARY 4286 02:40:24,537 --> 02:40:25,538 CARE PROVIDERS, EDUCATION 4287 02:40:25,538 --> 02:40:28,274 PROGRAM, THAT AIMS TO REDUCE 4288 02:40:28,274 --> 02:40:29,675 INCIDENCE OF PRENATAL ALCOHOL 4289 02:40:29,675 --> 02:40:32,345 EXPOSURE AND IMPROVE OUTCOMES IN 4290 02:40:32,345 --> 02:40:33,646 CHILDREN SUSPECTED OR DIAGNOSED 4291 02:40:33,646 --> 02:40:37,717 WITH FASDs THROUGH THE PROJECT 4292 02:40:37,717 --> 02:40:40,019 ECHO TRAINING DESIGNED TO REACH 4293 02:40:40,019 --> 02:40:42,622 PROVIDERS IN STATES AND 4294 02:40:42,622 --> 02:40:43,289 TERRITORIES, TRIBAL 4295 02:40:43,289 --> 02:40:44,156 ORGANIZATIONS, RURAL COMMUNITIES 4296 02:40:44,156 --> 02:40:47,994 WITH HIGHER RATE OF BINGE 4297 02:40:47,994 --> 02:40:49,328 DRINKING, ESPECIALLY IN RURAL 4298 02:40:49,328 --> 02:40:50,963 AREAS, AS WE KNOW SOMETIMES VERY 4299 02:40:50,963 --> 02:40:53,232 DIFFICULT TO GET SOME SERVICES 4300 02:40:53,232 --> 02:40:55,034 IN THAT AREA. 4301 02:40:55,034 --> 02:40:56,669 THIS AGREEMENT WAS AWARDED TO 4302 02:40:56,669 --> 02:41:00,172 BOSTON MEDICAL CENTER IN 4303 02:41:00,172 --> 02:41:01,073 PARTNERSHIP WITH MINNESOTA-BASED 4304 02:41:01,073 --> 02:41:04,977 GROUP ALLIANCE, NOW IN FINAL 4305 02:41:04,977 --> 02:41:06,078 PROJECT YEAR. 4306 02:41:06,078 --> 02:41:07,947 SO THAT GRANT CYCLE WILL BE 4307 02:41:07,947 --> 02:41:08,714 ENDING THIS SUMMER. 4308 02:41:08,714 --> 02:41:10,783 I WANTED TO SPREAD OUT THE WORD 4309 02:41:10,783 --> 02:41:11,450 THERE. 4310 02:41:11,450 --> 02:41:13,519 WE ARE CURRENTLY HAVING AN OPEN 4311 02:41:13,519 --> 02:41:14,820 NOTICE OF FUNDING OPPORTUNITY, 4312 02:41:14,820 --> 02:41:18,324 FOR THE NEXT FIVE-YEAR GRANT 4313 02:41:18,324 --> 02:41:18,524 CYCLE. 4314 02:41:18,524 --> 02:41:19,525 IT OPENED APRIL 3. 4315 02:41:19,525 --> 02:41:22,295 IT WILL BE CLOSED JUNE 21. 4316 02:41:22,295 --> 02:41:25,898 IT'S GOING TO BE ONE COOPERATIVE 4317 02:41:25,898 --> 02:41:29,502 AGREEMENT, AND WE HAVE ESTIMATED 4318 02:41:29,502 --> 02:41:30,703 AMOUNT OF 750,000, IT WILL START 4319 02:41:30,703 --> 02:41:33,573 SEPTEMBER 1, ALL THE WAY THROUGH 4320 02:41:33,573 --> 02:41:36,075 AUGUST 31, 2029. 4321 02:41:36,075 --> 02:41:37,276 THIS ONE LAST WAS FOUR YEARS, 4322 02:41:37,276 --> 02:41:40,279 THIS ONE IS FIVE YEARS BECAUSE 4323 02:41:40,279 --> 02:41:42,415 IT'S BEEN VERY SUCCESSFUL. 4324 02:41:42,415 --> 02:41:44,717 SO, WHAT IS THE PROGRAM GOAL? 4325 02:41:44,717 --> 02:41:47,353 IT'S TO IMPROVE ABILITY OF 4326 02:41:47,353 --> 02:41:50,189 PRIMARY CARE PROVIDERS WHO SERVE 4327 02:41:50,189 --> 02:41:52,058 PREGNANT INDIVIDUALS TO SCREEN 4328 02:41:52,058 --> 02:41:55,027 THEIR PATIENTS FOR ALCOHOL USE, 4329 02:41:55,027 --> 02:41:57,330 PROVIDE BRIEF INTERVENTION AND 4330 02:41:57,330 --> 02:41:58,731 REFER HIGH RISK PREGNANT WOMEN 4331 02:41:58,731 --> 02:42:01,267 TO SPECIALTY CARE. 4332 02:42:01,267 --> 02:42:02,568 ALSO IT'S A TWO-GOAL PURPOSE, 4333 02:42:02,568 --> 02:42:04,670 THE OTHER PART IS ALSO TO 4334 02:42:04,670 --> 02:42:07,073 IMPROVE ABILITY OF PROVIDERS 4335 02:42:07,073 --> 02:42:09,475 SERVING CHILDREN OR ADOLESCENTS 4336 02:42:09,475 --> 02:42:15,081 SUSPECTED OF FASD TO SCREEN FOR 4337 02:42:15,081 --> 02:42:16,382 PRENATAL ALCOHOL EXPOSURE AMONG 4338 02:42:16,382 --> 02:42:18,250 THOSE SUSPECTED OF FASD AND 4339 02:42:18,250 --> 02:42:20,086 MANAGE AND PROVIDE REFERRALS 4340 02:42:20,086 --> 02:42:23,255 NECESSARY SERVICES FOR THOSE 4341 02:42:23,255 --> 02:42:25,224 INDIVIDUALS IDENTIFIED WITH 4342 02:42:25,224 --> 02:42:25,424 FASD. 4343 02:42:25,424 --> 02:42:29,562 SO THE SAFEST CHOICE 4344 02:42:29,562 --> 02:42:30,596 COLLABORATIVE RECRUITS AND 4345 02:42:30,596 --> 02:42:34,033 EDUCATES HEALTH CARE PROVIDERS 4346 02:42:34,033 --> 02:42:35,434 TEAMS, SO IT'S PRACTICES. 4347 02:42:35,434 --> 02:42:37,637 BECAUSE YOU CAN TEACH ONE PERSON 4348 02:42:37,637 --> 02:42:39,372 BUT IF THAT PERSON LEAVES WHAT 4349 02:42:39,372 --> 02:42:39,939 HAPPENS? 4350 02:42:39,939 --> 02:42:43,943 WE AIM AT TEACHING PRACTICES. 4351 02:42:43,943 --> 02:42:44,844 COMMUNITY HEALTH CENTERS, 4352 02:42:44,844 --> 02:42:47,913 PRACTICES AGAIN IN RURAL AND 4353 02:42:47,913 --> 02:42:54,453 URBAN AND TRIBAL AREAS. 4354 02:42:54,453 --> 02:42:56,122 PARTICIPATING IN INTRODUCTORY 4355 02:42:56,122 --> 02:42:59,492 WEBINAR FOLLOWED BY TEN 4356 02:42:59,492 --> 02:43:00,693 SESSIONS, ECHO AIMS TO TEACH 4357 02:43:00,693 --> 02:43:03,896 HEALTH CARE PROVIDERS AGAIN HOW 4358 02:43:03,896 --> 02:43:05,297 TO SCREEN AND COUNSEL PATIENTS 4359 02:43:05,297 --> 02:43:09,468 ABOUT RISK OF ALCOHOL USE DURING 4360 02:43:09,468 --> 02:43:10,670 PREGNANCY AND FOR PEDIATRICS 4361 02:43:10,670 --> 02:43:13,072 ECHO SESSIONS AGAIN IT AIMS TO 4362 02:43:13,072 --> 02:43:14,840 IMPROVE FASD OUTCOME BY TRAINING 4363 02:43:14,840 --> 02:43:16,909 HEALTH CARE TEAMS HOW TO 4364 02:43:16,909 --> 02:43:19,945 IDENTIFY AND CARE FOR CHILDREN 4365 02:43:19,945 --> 02:43:21,180 AND ADOLESCENTS SUSPECTED WITH 4366 02:43:21,180 --> 02:43:21,514 FASD. 4367 02:43:21,514 --> 02:43:23,683 RIGHT NOW WE HAVE THREE COHORTS, 4368 02:43:23,683 --> 02:43:28,087 WE'RE AT END OF THE LAST ONE. 4369 02:43:28,087 --> 02:43:32,558 AND I WANT TO SHOW SOME GREAT 4370 02:43:32,558 --> 02:43:32,792 RESULTS. 4371 02:43:32,792 --> 02:43:36,362 THIS WAS COHORT 1, A 10-SESSION, 4372 02:43:36,362 --> 02:43:40,533 BEGAN IN JUNE 2021, ENDED APRIL 4373 02:43:40,533 --> 02:43:40,966 2022. 4374 02:43:40,966 --> 02:43:42,635 AND OVER HERE AS YOU CAN SEE 4375 02:43:42,635 --> 02:43:44,837 THERE'S A MAP OF ALL THE 4376 02:43:44,837 --> 02:43:47,773 PARTICIPANTS, ALL THE CLINICS 4377 02:43:47,773 --> 02:43:49,075 THAT PARTICIPATED. 4378 02:43:49,075 --> 02:43:52,044 COHORT 1 ENROLLED 15 COMMUNITY 4379 02:43:52,044 --> 02:43:54,914 HEALTH CENTERS WHICH INCLUDED 10 4380 02:43:54,914 --> 02:43:56,082 PRENATAL, 11 PEDIATRIC PRACTICES 4381 02:43:56,082 --> 02:43:58,417 FROM SEVEN DAYS, FIVE OF THE 22 4382 02:43:58,417 --> 02:44:00,720 PRACTICES WERE TRIBAL HEALTH 4383 02:44:00,720 --> 02:44:04,323 CENTERS, NINE IN RURAL AREAS. 4384 02:44:04,323 --> 02:44:07,927 SEVERAL OTHERS THAT WE WERE NOT 4385 02:44:07,927 --> 02:44:10,329 IDENTIFIED AS TRIBAL, HOWEVER 4386 02:44:10,329 --> 02:44:12,631 THEY DO HAVE WITHIN THEIR 4387 02:44:12,631 --> 02:44:15,801 POPULATION THEY SERVE TRIBAL 4388 02:44:15,801 --> 02:44:16,135 COMMUNITY. 4389 02:44:16,135 --> 02:44:21,273 I WANT TO SHOW THE COHORT NUMBER 4390 02:44:21,273 --> 02:44:28,280 2, WHICH STARTED MAY 22, AND 4391 02:44:28,280 --> 02:44:29,715 APRIL 2023. 4392 02:44:29,715 --> 02:44:32,051 COHORT 2 ENROLLED 18 COMMUNITY 4393 02:44:32,051 --> 02:44:34,120 HEALTH CENTERS INCLUDING 12 4394 02:44:34,120 --> 02:44:37,857 PRENATAL PRACTICES, 12 PEDIATRIC 4395 02:44:37,857 --> 02:44:41,193 PRACTICES, 7 STATES, 6 OF THE 4396 02:44:41,193 --> 02:44:51,704 222 TRIBAL -- TRIBAL, 7 RURAL, 4397 02:44:51,704 --> 02:44:53,139 AIMED AT CERTAIN AREA, MIDWEST, 4398 02:44:53,139 --> 02:44:55,875 THE PROGRAM HAS BEEN PROGRESSING 4399 02:44:55,875 --> 02:44:58,144 IT KEEPS EXPANDING BECAUSE AS WE 4400 02:44:58,144 --> 02:45:00,146 SEE SOME OF THESE NEEDS DON'T 4401 02:45:00,146 --> 02:45:02,014 JUST STAY IN ONE GEOGRAPHICAL 4402 02:45:02,014 --> 02:45:02,214 AREA. 4403 02:45:02,214 --> 02:45:05,718 SO BUT I WANTED TO TELL YOU THAT 4404 02:45:05,718 --> 02:45:11,223 ON BOTH COHORT 1 AND 2, 4405 02:45:11,223 --> 02:45:14,493 INITIALLY SAFEST CHOICE, WHAT 4406 02:45:14,493 --> 02:45:17,563 THEY DID WAS OVER 10-MONTH 4407 02:45:17,563 --> 02:45:19,532 PERIOD MONTHLY SESSIONS, THE 4408 02:45:19,532 --> 02:45:21,433 PEDIATRIC AND PRENATAL. 4409 02:45:21,433 --> 02:45:22,935 BUT COHORT 3, I WANT TO POINT 4410 02:45:22,935 --> 02:45:25,571 THIS OUT, THEY DID IT A LITTLE 4411 02:45:25,571 --> 02:45:26,539 BIT DIFFERENT. 4412 02:45:26,539 --> 02:45:28,808 IN ORDER TO INCREASE ENGAGEMENT 4413 02:45:28,808 --> 02:45:32,111 THEY DECIDED LET'S DO THIS. 4414 02:45:32,111 --> 02:45:34,580 THEY STARTED WITH THE 4415 02:45:34,580 --> 02:45:36,248 PEDIATRICS, AND THEN TO THE 4416 02:45:36,248 --> 02:45:37,783 PRENATAL, INSTEAD OF DOING IT IN 4417 02:45:37,783 --> 02:45:40,553 10 MONTHS THEY NOW HAVE IT IN 5 4418 02:45:40,553 --> 02:45:42,922 MONTHS AND DO IT BIMONTHLY, 4419 02:45:42,922 --> 02:45:45,791 FOUND ENGAGEMENT RATE OF THOSE 4420 02:45:45,791 --> 02:45:48,027 PROVIDERS THAT COMMIT TO IT 4421 02:45:48,027 --> 02:45:49,528 FINISH IT BECAUSE, YOU KNOW, A 4422 02:45:49,528 --> 02:45:52,431 LOT HAPPENS DURING A YEAR. 4423 02:45:52,431 --> 02:45:54,033 YOU HAVE ATTRITION, RETIREMENT, 4424 02:45:54,033 --> 02:45:56,101 PEOPLE MOVE, THINGS HAPPEN. 4425 02:45:56,101 --> 02:45:59,905 SO, THE ENGAGEMENT RATE HAS 4426 02:45:59,905 --> 02:46:01,040 INCREASED SIGNIFICANTLY. 4427 02:46:01,040 --> 02:46:02,107 CONCENTRATED BIMONTHLY AND MOVE 4428 02:46:02,107 --> 02:46:03,943 TO THE OTHER VERSUS THE WHOLE 4429 02:46:03,943 --> 02:46:04,944 10-YEAR SPAN. 4430 02:46:04,944 --> 02:46:06,378 THEY STILL GET WITHIN THE SAME 4431 02:46:06,378 --> 02:46:08,347 AMOUNT OF SESSIONS AND SAME 4432 02:46:08,347 --> 02:46:09,448 AMOUNT OF TEACHING BUT TRYING 4433 02:46:09,448 --> 02:46:18,324 SOMETHING ON THE THIRD COHORT. 4434 02:46:18,324 --> 02:46:28,868 FOR THIS THIRD COHORTS, AND WITH 4435 02:46:34,707 --> 02:46:35,841 PRENATAL WHICH STARTED FEBRUARY 4436 02:46:35,841 --> 02:46:40,112 AND WILL BE ENDING JUNE OF 2024. 4437 02:46:40,112 --> 02:46:44,049 SO FAR IN THE PEDIATRICS, WELL 4438 02:46:44,049 --> 02:46:47,152 PEDIATRICS 15 COMMUNITY HEALTH 4439 02:46:47,152 --> 02:46:49,655 SYSTEMS, 13 CLINICS, 13 STATES. 4440 02:46:49,655 --> 02:46:51,824 THIS ONE INCLUDED 2 SPECIAL 4441 02:46:51,824 --> 02:46:55,027 PARTICIPANTS, THEY CALLED THEM 4442 02:46:55,027 --> 02:46:57,630 AUDITORS, AND THE REASON IS FOR 4443 02:46:57,630 --> 02:47:02,468 THEM TO ENGAGE IN PRACTICE, THEY 4444 02:47:02,468 --> 02:47:04,737 HAVE TO -- THE HEALTH CENTER HAS 4445 02:47:04,737 --> 02:47:05,938 TO COMMIT. 4446 02:47:05,938 --> 02:47:06,939 THERE'S REALLY A CONTRACT WHICH 4447 02:47:06,939 --> 02:47:08,908 SAYS THIS IS WHAT WE EXPECT OF 4448 02:47:08,908 --> 02:47:09,108 YOU. 4449 02:47:09,108 --> 02:47:10,542 SO THE AUDITORS WANT TO BE ABLE 4450 02:47:10,542 --> 02:47:13,178 TO COME BUT THEY DON'T HAVE AT 4451 02:47:13,178 --> 02:47:13,946 LEAST THREE PROVIDERS. 4452 02:47:13,946 --> 02:47:16,215 THAT'S ANOTHER THING. 4453 02:47:16,215 --> 02:47:18,217 IN ORDER TO BE -- PRACTICE, THEY 4454 02:47:18,217 --> 02:47:20,152 WANT TO ENROLL AT LEAST THREE IN 4455 02:47:20,152 --> 02:47:20,819 EACH SESSION. 4456 02:47:20,819 --> 02:47:22,388 THEY STILL GET ALL THE TRAINING 4457 02:47:22,388 --> 02:47:25,324 AND EVERYTHING BUT THEY ARE JUST 4458 02:47:25,324 --> 02:47:26,525 CONSIDERED AUDITORS. 4459 02:47:26,525 --> 02:47:27,793 SO, FOR THE PRENATAL GROUP NOT 4460 02:47:27,793 --> 02:47:30,362 ON THE MAP, THEY HAVE ENROLLED 4461 02:47:30,362 --> 02:47:35,935 13 HEALTH SYSTEMS INCLUDING 10 4462 02:47:35,935 --> 02:47:37,569 PRACTICES, THREE AUDITORS FROM 4463 02:47:37,569 --> 02:47:40,105 NINE STATES AND AGAIN CURRENTLY 4464 02:47:40,105 --> 02:47:41,507 GOING ON RIGHT NOW. 4465 02:47:41,507 --> 02:47:43,375 I WANTED TO GIVE YOU THESE ARE A 4466 02:47:43,375 --> 02:47:45,544 SIGN OF THE CORE MODULES. 4467 02:47:45,544 --> 02:47:49,715 AS YOU CAN SEE, THE FIRST FIVE 4468 02:47:49,715 --> 02:47:51,784 THEY ARE SIMILAR. 4469 02:47:51,784 --> 02:47:53,686 ONCE THEY GET INTO -- SEPARATE 4470 02:47:53,686 --> 02:47:57,289 BUT EVEN THOSE THAT ARE SIMILAR 4471 02:47:57,289 --> 02:48:00,359 WITHIN THE FIRST FIVE SESSIONS, 4472 02:48:00,359 --> 02:48:02,294 THEY ARE STILL EACH GEARED TO 4473 02:48:02,294 --> 02:48:09,001 THE POPULATION THEY ARE SERVING. 4474 02:48:09,001 --> 02:48:12,137 LIKE THE FASD ESSENTIAL SCIENCES 4475 02:48:12,137 --> 02:48:13,806 IS THE SAME BUT HAS DATES TO 4476 02:48:13,806 --> 02:48:17,543 PROVIDERS THEY ARE WORKING WITH. 4477 02:48:17,543 --> 02:48:20,946 ADDITIONAL EDUCATIONAL CONTENT, 4478 02:48:20,946 --> 02:48:24,650 ASIDE FROM THE SESSIONS, INCLUDE 4479 02:48:24,650 --> 02:48:25,284 DEMONSTRATION VIDEOS, I'VE SEEN 4480 02:48:25,284 --> 02:48:27,720 A LOT OF THOSE. 4481 02:48:27,720 --> 02:48:28,821 PATIENT CONVERSATIONS, INTERVIEW 4482 02:48:28,821 --> 02:48:30,923 WITH INDIVIDUALS WITH LIVED 4483 02:48:30,923 --> 02:48:32,891 EXPERIENCE. 4484 02:48:32,891 --> 02:48:35,594 SMALL GROUPS, SKILL PRACTICES, 4485 02:48:35,594 --> 02:48:39,565 AND THE FACULTY TEACH, IT'S VERY 4486 02:48:39,565 --> 02:48:41,433 DIVERSE. 4487 02:48:41,433 --> 02:48:45,904 M.D.s, RNS, SOCIAL WORKERS, 4488 02:48:45,904 --> 02:48:46,538 MIDWIVES, NURSE PRACTITIONERS, 4489 02:48:46,538 --> 02:48:49,308 SO THEIR AIM IS TO GET EVERYBODY 4490 02:48:49,308 --> 02:48:51,643 INVOLVED WITHIN THE CARE SYSTEM 4491 02:48:51,643 --> 02:48:55,014 OF THE PRENATAL PERSON OR THE 4492 02:48:55,014 --> 02:48:55,214 CHILD. 4493 02:48:55,214 --> 02:48:58,650 AND ALSO ONE THING THAT I WOULD 4494 02:48:58,650 --> 02:49:01,353 LIKE TO SAY IS THAT THEY HAVE AN 4495 02:49:01,353 --> 02:49:03,122 ADVISORY BOARD, AND THE ADVISORY 4496 02:49:03,122 --> 02:49:05,858 BOARD HELPS GUIDE SOME OF THE 4497 02:49:05,858 --> 02:49:06,158 TRAININGS. 4498 02:49:06,158 --> 02:49:13,165 IN THE ADVISORY BOARD ONE OF THE 4499 02:49:13,165 --> 02:49:15,901 REQUIREMENTS IS ASIDE PATIENTS, 4500 02:49:15,901 --> 02:49:17,336 RESEARCHERS, ADVOCATES BUT WE 4501 02:49:17,336 --> 02:49:19,071 REQUIRE INDIVIDUALS WITH LIVED 4502 02:49:19,071 --> 02:49:19,838 EXPERIENCE. 4503 02:49:19,838 --> 02:49:23,242 AND THEY MEET ANNUALLY IN ORDER 4504 02:49:23,242 --> 02:49:25,744 TO ADVISE AND HELP WITH THE 4505 02:49:25,744 --> 02:49:27,179 RECRUITMENT BUT ALSO HELP WITH 4506 02:49:27,179 --> 02:49:29,048 THE TWEAKING OF SOME OF THE 4507 02:49:29,048 --> 02:49:34,319 OTHER PROGRAMS AND SOME T.A.s. 4508 02:49:34,319 --> 02:49:35,954 I'M NOT GOING TO READ THE WHOLE 4509 02:49:35,954 --> 02:49:36,388 THING. 4510 02:49:36,388 --> 02:49:38,690 WE'VE TALKED ABOUT THIS. 4511 02:49:38,690 --> 02:49:40,426 SOME OF THIS IS THE SAME THING 4512 02:49:40,426 --> 02:49:43,796 THAT IN THE FIELD YOU'RE SEEING. 4513 02:49:43,796 --> 02:49:47,433 THIS IS SOME THEMES THAT CAME 4514 02:49:47,433 --> 02:49:51,703 OUT, FEAR, GUILT, SHAME, SOME 4515 02:49:51,703 --> 02:49:55,841 PROVIDERS ARE ALSO AFRAID TO 4516 02:49:55,841 --> 02:49:58,811 APPROACH A PRENATAL WOMAN, IN 4517 02:49:58,811 --> 02:50:00,779 ORDER NOT TO -- SOME OF THE -- 4518 02:50:00,779 --> 02:50:03,849 I'VE BEEN IN SOME OF THE 4519 02:50:03,849 --> 02:50:04,083 COURSES. 4520 02:50:04,083 --> 02:50:08,887 AND I THINK THEIR BIGGEST FEAR 4521 02:50:08,887 --> 02:50:14,259 HOW TO ENGAGE PREGNANT 4522 02:50:14,259 --> 02:50:18,931 INDIVIDUAL WITHOUT BEING 4523 02:50:18,931 --> 02:50:20,265 PATRONIZING, PATRIOTIC, THEY 4524 02:50:20,265 --> 02:50:21,700 WANT TO SUPPORT THEM WITHOUT 4525 02:50:21,700 --> 02:50:23,102 BEING ABLE TO SHAME THEM. 4526 02:50:23,102 --> 02:50:24,870 SO THAT SEEMS TO BE LIKE THE 4527 02:50:24,870 --> 02:50:26,171 HARDEST THING FOR THEM TO DO, 4528 02:50:26,171 --> 02:50:31,977 JUST TO GET THEM IN THERE. 4529 02:50:31,977 --> 02:50:32,945 SO, OKAY. 4530 02:50:32,945 --> 02:50:33,612 LET ME JUST SEE. 4531 02:50:33,612 --> 02:50:35,581 I WANT TO TELL YOU, SO ASIDE 4532 02:50:35,581 --> 02:50:40,819 FROM THE CLASSES THEY ALSO HAVE 4533 02:50:40,819 --> 02:50:41,720 T.A. 4534 02:50:41,720 --> 02:50:42,754 HERE IS SOME TECHNICAL 4535 02:50:42,754 --> 02:50:43,689 ASSISTANCE THEY PROVIDE, NOT 4536 02:50:43,689 --> 02:50:44,890 ONLY TO PROVIDERS WHO COME IN 4537 02:50:44,890 --> 02:50:46,525 BUT THEY WILL GO TO THE CLINICS 4538 02:50:46,525 --> 02:50:49,595 WHERE THE PROVIDERS ARE COMING 4539 02:50:49,595 --> 02:50:51,230 FROM AND HELP PROVIDE TRAINING 4540 02:50:51,230 --> 02:50:56,935 AND TECHNICAL ASSISTANCE. 4541 02:50:56,935 --> 02:50:58,470 A LITTLE BIT ABOUT THE PROGRAM 4542 02:50:58,470 --> 02:51:00,739 AND WHAT THEY DO, THE PROGRAM 4543 02:51:00,739 --> 02:51:02,407 EVALUATION EMPLOYS A MIXED 4544 02:51:02,407 --> 02:51:06,445 METHOD DESIGN TO ACCESS THE 4545 02:51:06,445 --> 02:51:08,080 PROGRAMS IMPLEMENTATION AND 4546 02:51:08,080 --> 02:51:10,716 OUTCOMES ACROSS THREE COHORTS OF 4547 02:51:10,716 --> 02:51:11,283 COMMUNITIES. 4548 02:51:11,283 --> 02:51:12,718 EVALUATORS UTILIZE QUALITATIVE 4549 02:51:12,718 --> 02:51:14,553 AND QUANTITATIVE DATA STRATEGIES 4550 02:51:14,553 --> 02:51:19,591 INCLUDING INTERVIEWS, FOCUS 4551 02:51:19,591 --> 02:51:20,292 GROUPS, PROGRAM OBSERVATIONS, 4552 02:51:20,292 --> 02:51:22,094 AND LET ME GIVE YOU SOME OF 4553 02:51:22,094 --> 02:51:22,394 THAT. 4554 02:51:22,394 --> 02:51:23,428 SOME FUN PARTS. 4555 02:51:23,428 --> 02:51:25,597 SO HERE'S THE GOOD PART. 4556 02:51:25,597 --> 02:51:27,466 THIS IS SO FAR THEY HAVE DONE 4557 02:51:27,466 --> 02:51:30,869 EVALUATION ON COHORT 1 AND 4558 02:51:30,869 --> 02:51:31,303 COHORT 2. 4559 02:51:31,303 --> 02:51:34,473 AND I WANT TO TELL YOU NEXT TWO 4560 02:51:34,473 --> 02:51:36,108 SLIDES SHOW RESULTS, THIS SLIDE 4561 02:51:36,108 --> 02:51:38,510 SHOWS SURVEY RESULTS FOR COHORT 4562 02:51:38,510 --> 02:51:40,045 1 AND 2, HIGHLIGHTING POSITIVE 4563 02:51:40,045 --> 02:51:42,447 IMPACT FOR PRENATAL AND 4564 02:51:42,447 --> 02:51:43,448 PEDIATRIC CLINICS AND BOTH 4565 02:51:43,448 --> 02:51:45,350 EXHIBIT HIGH RATE OF 4566 02:51:45,350 --> 02:51:46,852 PARTICIPATION RATE WITH 4567 02:51:46,852 --> 02:51:48,053 ATTENDEES ENGAGING AT LEAST 7 4568 02:51:48,053 --> 02:51:51,557 OUT OF 10 SESSIONS, AND 4569 02:51:51,557 --> 02:51:53,192 PARTICIPANTS UNANIMOUSLY AGREE 4570 02:51:53,192 --> 02:51:54,393 THE PROGRAM SIGNIFICANTLY 4571 02:51:54,393 --> 02:51:56,261 INCREASED THEIR KNOWLEDGE ABOUT 4572 02:51:56,261 --> 02:52:01,433 FASD, BOTH IN PRENATAL AND 4573 02:52:01,433 --> 02:52:02,734 PEDIATRIC SETTINGS. 4574 02:52:02,734 --> 02:52:03,468 SELF-EFFICACY AND PRACTICE 4575 02:52:03,468 --> 02:52:06,605 CHANGE, ONE OF THE THINGS THEY 4576 02:52:06,605 --> 02:52:10,676 WERE -- WE REQUIRE THEM TO 4577 02:52:10,676 --> 02:52:11,343 MEASURE. 4578 02:52:11,343 --> 02:52:14,379 BOTH HAVE NOTABLE OUTCOME THAT 4579 02:52:14,379 --> 02:52:16,148 THEY OBSERVED BOTH COHORTSN 4580 02:52:16,148 --> 02:52:17,883 PRENATAL COHORT 1 AND 2 REPORTED 4581 02:52:17,883 --> 02:52:18,383 SUBSTANTIAL INCREASE IN 4582 02:52:18,383 --> 02:52:21,853 CONFIDENCE IN THE SCREENING FOR 4583 02:52:21,853 --> 02:52:24,022 ALCOHOL USE, IN PEDIATRIC 4584 02:52:24,022 --> 02:52:27,526 SETTING, SO SIGNIFICANT 4585 02:52:27,526 --> 02:52:28,860 IMPROVEMENT AS WELL. 4586 02:52:28,860 --> 02:52:31,363 PARTICIPANTS IN BOTH COHORTS 4587 02:52:31,363 --> 02:52:32,464 AFFIRMED INCREASE THE 4588 02:52:32,464 --> 02:52:33,999 UTILIZATION OF APPROPRIATE 4589 02:52:33,999 --> 02:52:41,206 METHODS FOR SCREENING, 4590 02:52:41,206 --> 02:52:42,507 INTERVENING, SHOWCASING TANGIBLE 4591 02:52:42,507 --> 02:52:43,942 PRACTICE CHANGE, WE WANT THEM 4592 02:52:43,942 --> 02:52:47,346 WHO LEARN, HOW ARE YOU USING 4593 02:52:47,346 --> 02:52:48,447 THIS, PRE-POST, MID-POST, AND 4594 02:52:48,447 --> 02:52:49,548 AFTER SIX MONTHS. 4595 02:52:49,548 --> 02:52:50,515 I KNOW WE'RE RUNNING OUT. 4596 02:52:50,515 --> 02:52:53,452 I WANT TO PUT A PLUG HERE FOR 4597 02:52:53,452 --> 02:52:56,555 THE NATIONAL MATERNAL MENTAL 4598 02:52:56,555 --> 02:52:58,090 HEALTH HOTLINE. 4599 02:52:58,090 --> 02:52:59,958 IT IS OPEN 24/7. 4600 02:52:59,958 --> 02:53:02,227 THIS SUPPORTS NOT ONLY PREGNANT 4601 02:53:02,227 --> 02:53:03,462 INDIVIDUALS BUT FAMILY. 4602 02:53:03,462 --> 02:53:08,500 AND THEY PROVIDE MENTAL HEALTH 4603 02:53:08,500 --> 02:53:10,035 AND RESOURCES FOR WOMEN AND 4604 02:53:10,035 --> 02:53:11,803 PREGNANT PEOPLE WHO MIGHT NEED 4605 02:53:11,803 --> 02:53:14,973 THAT EXTRA SUPPORT DURING AND 4606 02:53:14,973 --> 02:53:15,641 AFTER PREGNANCY. 4607 02:53:15,641 --> 02:53:19,778 AND THANK YOU SO MUCH. 4608 02:53:19,778 --> 02:53:25,784 4609 02:53:25,784 --> 02:53:32,357 4610 02:53:32,357 --> 02:53:34,660 >> THANK YOU VERY MUCH. 4611 02:53:34,660 --> 02:53:36,295 WE HAVE NOW TIME FOR QUESTIONS 4612 02:53:36,295 --> 02:53:37,162 AND COMMENTS. 4613 02:53:37,162 --> 02:53:40,565 I KNOW WE HAVE SOME QUESTIONS 4614 02:53:40,565 --> 02:53:41,433 FROM VIDEOCAST. 4615 02:53:41,433 --> 02:53:46,905 WE CAN BEGIN WITH THAT. 4616 02:53:46,905 --> 02:53:52,477 4617 02:53:52,477 --> 02:53:52,611 4618 02:53:52,611 --> 02:53:55,881 >> WE'VE GOT A COMMENT. 4619 02:53:55,881 --> 02:53:57,082 AND THEN TWO QUESTIONS THAT CAME 4620 02:53:57,082 --> 02:53:59,384 IN OVER THE LUNCH BREAK THAT I 4621 02:53:59,384 --> 02:54:01,353 THINK WE CAN PERTAIN TO ALL THE 4622 02:54:01,353 --> 02:54:04,323 MEMBERS, SO WE CAN MENTION 4623 02:54:04,323 --> 02:54:05,724 THOSE. 4624 02:54:05,724 --> 02:54:10,228 SO THERE WAS A COMMENT BY 4625 02:54:10,228 --> 02:54:11,863 MADONNA MOONEY, THAT WANTED TO 4626 02:54:11,863 --> 02:54:14,733 LET A PERSON KNOW MAINE HAS 4627 02:54:14,733 --> 02:54:17,469 GREATLY BENEFITED FROM SAFEST 4628 02:54:17,469 --> 02:54:21,606 CHOICE PROGRAM, SO THANK YOU, 4629 02:54:21,606 --> 02:54:21,940 HRSA. 4630 02:54:21,940 --> 02:54:25,677 TWO COMMENTS THAT CAME IN OVER 4631 02:54:25,677 --> 02:54:25,877 LUNCH. 4632 02:54:25,877 --> 02:54:31,350 THEY ARE LONG BUT I'LL SEE IF I 4633 02:54:31,350 --> 02:54:33,018 CAN SUMMARIZE THEM. 4634 02:54:33,018 --> 02:54:34,519 BASICALLY THEY WERE QUESTIONS AS 4635 02:54:34,519 --> 02:54:37,155 TO WHETHER THERE WERE EFFORTS 4636 02:54:37,155 --> 02:54:42,661 UNDERWAY TO COMPILE IN A SINGLE 4637 02:54:42,661 --> 02:54:44,596 LOCATION ALL FASD-RELEVANT DATA. 4638 02:54:44,596 --> 02:54:50,302 AND THIS IS DATA FROM PREVALENCE 4639 02:54:50,302 --> 02:54:55,574 TO SAMHSA, NISDA, TREATMENT 4640 02:54:55,574 --> 02:54:56,975 OUTCOMES, MEDICARE, DIAGNOSTIC 4641 02:54:56,975 --> 02:55:05,317 CODES, MOSTLY EVERYTHING UNDER 4642 02:55:05,317 --> 02:55:07,052 THE SUN, PRAM'S DATA, TO IMPROVE 4643 02:55:07,052 --> 02:55:08,387 DOCUMENTATION OF WHAT THE 4644 02:55:08,387 --> 02:55:09,388 FEDERAL GOVERNMENT IS DOING IN 4645 02:55:09,388 --> 02:55:16,161 THE AREA OF FASD. 4646 02:55:16,161 --> 02:55:18,230 AND COULD ALSO HELP WITH 4647 02:55:18,230 --> 02:55:23,802 EMPHASIZING IMPORTANCE OF THE 4648 02:55:23,802 --> 02:55:26,338 ISSUE TO LEGISLATURE, 4649 02:55:26,338 --> 02:55:27,205 POLITICIANS, AND THE LIKE. 4650 02:55:27,205 --> 02:55:31,143 DOES ANYONE WANT TO TRY TO 4651 02:55:31,143 --> 02:55:31,576 TACKLE THAT? 4652 02:55:31,576 --> 02:55:33,111 >> I'LL TAKE A FIRST CRACK. 4653 02:55:33,111 --> 02:55:35,514 I THINK IT'S A GREAT SUGGESTION. 4654 02:55:35,514 --> 02:55:37,282 I THINK WE'LL HAVE TO CONSIDER 4655 02:55:37,282 --> 02:55:39,885 HOW WE CAN DO THAT. 4656 02:55:39,885 --> 02:55:41,553 CERTAINLY, THE PERSON WHO MADE 4657 02:55:41,553 --> 02:55:42,821 THAT COMMENT IS ABSOLUTELY 4658 02:55:42,821 --> 02:55:43,054 CORRECT. 4659 02:55:43,054 --> 02:55:45,590 THERE'S A LOT OF DATA OUT THERE 4660 02:55:45,590 --> 02:55:46,792 IN MULTIPLE SOURCES FROM 4661 02:55:46,792 --> 02:55:49,094 MULTIPLE AGENCIES AND ALL. 4662 02:55:49,094 --> 02:55:50,529 AND PULLING THAT TOGETHER IN A 4663 02:55:50,529 --> 02:55:52,798 SINGLE SITE WOULD BE VALUABLE, 4664 02:55:52,798 --> 02:55:55,867 MAYBE SOMETHING THAT THIS 4665 02:55:55,867 --> 02:55:57,602 COMMITTEE COULD CONSIDER. 4666 02:55:57,602 --> 02:55:58,770 YOU KNOW, GIVEN WHAT RESOURCES 4667 02:55:58,770 --> 02:56:01,873 ARE AVAILABLE TO DO THAT, BUT 4668 02:56:01,873 --> 02:56:02,974 WE'LL TAKE THAT UNDER 4669 02:56:02,974 --> 02:56:03,308 CONSIDERATION. 4670 02:56:03,308 --> 02:56:07,813 THANK YOU FOR THE COMMENT. 4671 02:56:07,813 --> 02:56:09,347 >> I WILL ADD THAT I THINK FIRST 4672 02:56:09,347 --> 02:56:12,517 STEP WOULD BE OUR AGENCY UPDATES 4673 02:56:12,517 --> 02:56:15,153 THAT WE PROVIDE, AS PART OF THIS 4674 02:56:15,153 --> 02:56:16,254 COMMITTEE AND THOSE AGENCY 4675 02:56:16,254 --> 02:56:21,059 UPDATES ARE AT LEAST IN ONE 4676 02:56:21,059 --> 02:56:23,361 LOCATION ON THE ICCFASD WEBSITE. 4677 02:56:23,361 --> 02:56:24,796 IT DOESN'T GO BEYOND THE 4678 02:56:24,796 --> 02:56:26,264 ACTIVITIES THAT WE'RE INVOLVED 4679 02:56:26,264 --> 02:56:29,601 IN BUT THAT COULD BE A GOOD 4680 02:56:29,601 --> 02:56:29,835 START. 4681 02:56:29,835 --> 02:56:30,368 >> ALL RIGHT. 4682 02:56:30,368 --> 02:56:35,273 THANK YOU. 4683 02:56:35,273 --> 02:56:36,708 THANK YOU, BILL. 4684 02:56:36,708 --> 02:56:38,944 QUESTIONS FROM MEMBERS? 4685 02:56:38,944 --> 02:56:41,746 IF ANYBODY ON ZOOM WANTS TO ASK 4686 02:56:41,746 --> 02:56:43,949 QUESTIONS PLEASE RAISE YOUR 4687 02:56:43,949 --> 02:56:44,149 HAND. 4688 02:56:44,149 --> 02:56:45,383 OKAY, GO AHEAD. 4689 02:56:45,383 --> 02:56:47,018 >> A QUESTION FOR SONSY. 4690 02:56:47,018 --> 02:56:48,420 THAT WAS A FANTASTIC 4691 02:56:48,420 --> 02:56:49,855 PRESENTATION, I LOOK FORWARD TO 4692 02:56:49,855 --> 02:56:51,389 THE DATA THAT COMES OUT AS TO 4693 02:56:51,389 --> 02:56:53,692 THE UPTAKE AND ALL. 4694 02:56:53,692 --> 02:56:54,559 TWO QUESTIONS. 4695 02:56:54,559 --> 02:56:57,963 WERE THE PEOPLE WHO CAME FROM 4696 02:56:57,963 --> 02:56:59,731 DIFFERENT CLINICS VOLUNTEERS AND 4697 02:56:59,731 --> 02:57:00,932 THEREFORE ALREADY INTERESTED OR 4698 02:57:00,932 --> 02:57:04,336 VOLUNTOLD TO DO IT? 4699 02:57:04,336 --> 02:57:07,172 AND THEN IS THERE ANY DATA 4700 02:57:07,172 --> 02:57:08,607 COLLECTION TO SHOW WHETHER THEY 4701 02:57:08,607 --> 02:57:11,343 HAVE SERVED AS AMBASSADORS TO 4702 02:57:11,343 --> 02:57:12,744 THEIR CLINICS AND THEREFORE IT'S 4703 02:57:12,744 --> 02:57:15,914 TAKEN UP MORE BROADLY THAN JUST 4704 02:57:15,914 --> 02:57:17,048 THE INITIAL PARTICIPANTS? 4705 02:57:17,048 --> 02:57:18,316 >> OKAY, TWO THINGS. 4706 02:57:18,316 --> 02:57:22,821 FOR THE FIRST ONE, NO. 4707 02:57:22,821 --> 02:57:24,122 NO ONE IS VOLUNTOLD. 4708 02:57:24,122 --> 02:57:26,458 IN FACT, THIS PROGRAM INITIALLY 4709 02:57:26,458 --> 02:57:27,526 WAS A THREE-YEAR PROGRAM. 4710 02:57:27,526 --> 02:57:29,394 BECAUSE IT WAS THE FIRST TIME WE 4711 02:57:29,394 --> 02:57:30,595 WERE DOING IT. 4712 02:57:30,595 --> 02:57:33,431 AND WE FOUND OUT THEY WERE 4713 02:57:33,431 --> 02:57:35,734 HAVING A WAITLIST. 4714 02:57:35,734 --> 02:57:37,602 SO WE WERE ABLE TO FUND AN 4715 02:57:37,602 --> 02:57:39,704 EXTENSION TO MAKE IT A FOUR-YEAR 4716 02:57:39,704 --> 02:57:42,274 PROGRAM UNTIL WE GET FUNDING TO 4717 02:57:42,274 --> 02:57:45,277 START THE FIFTH YEAR. 4718 02:57:45,277 --> 02:57:47,579 AND THE INCENTIVE IS NOT ONLY TO 4719 02:57:47,579 --> 02:57:49,180 LEARN AND TO HAVE THAT CHANGE 4720 02:57:49,180 --> 02:57:51,816 BACK, BECAUSE A LOT OF 4721 02:57:51,816 --> 02:57:53,251 PROVIDERS, ALMOST LIKE MYSELF, I 4722 02:57:53,251 --> 02:57:55,687 WENT THROUGH -- I'M A LICENSED 4723 02:57:55,687 --> 02:57:57,756 CLINICAL SOCIAL WORKERS, I WAS 4724 02:57:57,756 --> 02:58:00,158 TELLING KATHLEEN THAT IT'S -- I 4725 02:58:00,158 --> 02:58:01,359 DON'T REMEMBER ANYTHING ABOUT 4726 02:58:01,359 --> 02:58:01,593 FASD. 4727 02:58:01,593 --> 02:58:05,630 THE ONLY THING I REMEMBER ON 4728 02:58:05,630 --> 02:58:06,364 ALCOHOL WAS THE PHYSIOLOGIC, SIR 4729 02:58:06,364 --> 02:58:10,769 OWES CIRRHOSIS OF THE LIVER, 4730 02:58:10,769 --> 02:58:12,971 EVEN IN MENTAL HEALTH THAT WAS 4731 02:58:12,971 --> 02:58:15,807 NOT ADDRESSED. 4732 02:58:15,807 --> 02:58:17,909 I GRADUATED MANY MOONS AGO SO 4733 02:58:17,909 --> 02:58:19,477 I'M SURE IT HAS CHANGED. 4734 02:58:19,477 --> 02:58:23,915 NO, THEY ARE NOT VOLUMEN TOLD. 4735 02:58:23,915 --> 02:58:24,349 -- VOLUNTOLD. 4736 02:58:24,349 --> 02:58:27,652 THEY WANT TO. 4737 02:58:27,652 --> 02:58:28,753 THEY GET CEUS AND OTHER THINGS 4738 02:58:28,753 --> 02:58:31,590 AS WELL. 4739 02:58:31,590 --> 02:58:35,727 WE HAVE FOUND THAT AS -- SOME 4740 02:58:35,727 --> 02:58:37,729 COHORT 1, SOME FROM SOME CLINICS 4741 02:58:37,729 --> 02:58:39,264 ARE COMING BACK THAT HEARD ABOUT 4742 02:58:39,264 --> 02:58:40,599 IT AND WERE NOT EITHER WORKING 4743 02:58:40,599 --> 02:58:43,435 AT THAT TIME, COULDN'T MAKE THAT 4744 02:58:43,435 --> 02:58:44,169 ONE-YEAR COMMITMENT, AND ARE 4745 02:58:44,169 --> 02:58:46,237 COMING BACK. 4746 02:58:46,237 --> 02:58:47,672 SO WE FIND IT'S NOT JUST WHAT 4747 02:58:47,672 --> 02:58:49,874 THEY LEARN IN THE CLASSES, IN 4748 02:58:49,874 --> 02:58:52,143 THE SESSIONS THEMSELVES. 4749 02:58:52,143 --> 02:58:54,579 BECAUSE WE DO DO A POST, SIX 4750 02:58:54,579 --> 02:58:58,083 MONTHS AFTER, HOPEFULLY WE'LL DO 4751 02:58:58,083 --> 02:58:58,617 MORE. 4752 02:58:58,617 --> 02:59:00,285 SO I THINK IT'S SOMETHING THAT 4753 02:59:00,285 --> 02:59:05,390 PEOPLE WANT TO KNOW ABOUT. 4754 02:59:05,390 --> 02:59:07,726 >> THANK YOU. 4755 02:59:07,726 --> 02:59:10,562 WE DO HAVE QUESTIONS ON 4756 02:59:10,562 --> 02:59:11,329 VIDEOCAST. 4757 02:59:11,329 --> 02:59:20,505 I CAN SEE FIRST DR. MEGHAN 4758 02:59:20,505 --> 02:59:21,806 O'NEILL PLEASE GO AHEAD. 4759 02:59:21,806 --> 02:59:24,643 >> I WAS ALSO WONDERING IF 4760 02:59:24,643 --> 02:59:28,146 THERE'S ANY EFFORTS TO TARGET 4761 02:59:28,146 --> 02:59:29,381 TRAINEES SPECIFICALLY, IN 4762 02:59:29,381 --> 02:59:31,016 PEDIATRIC PROGRAMS, I'M A 4763 02:59:31,016 --> 02:59:33,051 PHYSICIAN TRAINED IN 4764 02:59:33,051 --> 02:59:33,752 NEURODEVELOPMENTAL DISABILITIES, 4765 02:59:33,752 --> 02:59:37,722 AND AS A MEDICAL SCHOOL LEVEL 4766 02:59:37,722 --> 02:59:39,124 THERE'S NO UNIFORM REQUIREMENT 4767 02:59:39,124 --> 02:59:41,426 FOR ANY KIND OF DISABILITY 4768 02:59:41,426 --> 02:59:42,727 CURRICULUM IN MEDICAL SCHOOLS. 4769 02:59:42,727 --> 02:59:45,230 AND FOR THE LAST FIVE YEARS AT 4770 02:59:45,230 --> 02:59:49,300 MY CHILDREN'S HOSPITAL I RAN THE 4771 02:59:49,300 --> 02:59:49,934 DEVELOPMENTAL PEDIATRICS 4772 02:59:49,934 --> 02:59:54,673 ROTATION, AND I THINK THERE'S NO 4773 02:59:54,673 --> 02:59:56,007 STANDARDIZATION THERE, AND 4774 02:59:56,007 --> 02:59:57,709 EXPERIENCES FOR MEDICAL STUDENTS 4775 02:59:57,709 --> 03:00:02,113 AND PEDIATRICIANS ARE REALLY 4776 03:00:02,113 --> 03:00:03,782 VARIABLE ACROSS THE BOARD, 4777 03:00:03,782 --> 03:00:05,950 WONDERING IF THERE'S EFFORT TO 4778 03:00:05,950 --> 03:00:06,951 STUDY AND ECHO CURRICULUM LIKE 4779 03:00:06,951 --> 03:00:08,820 THIS AND EXTEND IT SPECIFICALLY 4780 03:00:08,820 --> 03:00:13,324 TO TRAINEES OR ANY WAY TO 4781 03:00:13,324 --> 03:00:15,493 INTERJECT CURRICULUMS DEVELOPED 4782 03:00:15,493 --> 03:00:16,995 INTO THE INFRASTRUCTURE OF 4783 03:00:16,995 --> 03:00:17,629 MEDICAL TRAINING BECAUSE, YOU 4784 03:00:17,629 --> 03:00:19,030 KNOW, THIS HAS BEEN MENTIONED 4785 03:00:19,030 --> 03:00:21,066 MANY TIMES BUT I THINK THERE'S 4786 03:00:21,066 --> 03:00:22,500 JUST MANY PHYSICIANS WHO DON'T 4787 03:00:22,500 --> 03:00:26,104 HAVE A CLUE HOW TO APPROACH 4788 03:00:26,104 --> 03:00:27,205 FASD. 4789 03:00:27,205 --> 03:00:28,406 >> THANK YOU. 4790 03:00:28,406 --> 03:00:31,042 THANK YOU, GREAT TO HEAR 4791 03:00:31,042 --> 03:00:33,111 QUESTIONS AND COMMENTS FROM NEW 4792 03:00:33,111 --> 03:00:33,344 MEMBERS. 4793 03:00:33,344 --> 03:00:35,413 ANYBODY WANTS TO ANSWER? 4794 03:00:35,413 --> 03:00:38,383 I THINK IT MAY BE CDC MEMBERS 4795 03:00:38,383 --> 03:00:39,584 ONLINE, DO WE HAVE ANYBODY ON 4796 03:00:39,584 --> 03:00:44,823 ZOOM WHO WOULD LIKE TO ANSWER 4797 03:00:44,823 --> 03:00:46,224 DR. O'NEILL'S QUESTION? 4798 03:00:46,224 --> 03:00:51,629 CDC HAS DONE SOME WORK TO 4799 03:00:51,629 --> 03:00:53,598 IMPLEMENT IN GROUP QUESTIONS ON 4800 03:00:53,598 --> 03:01:02,006 FASD IN CURRICULUM. 4801 03:01:02,006 --> 03:01:03,675 >> CAN I FOLLOW UP? 4802 03:01:03,675 --> 03:01:05,410 WHAT KIND OF MODULE, WHAT KIND 4803 03:01:05,410 --> 03:01:07,812 OF TIME COULD BE DEVOTED TO 4804 03:01:07,812 --> 03:01:08,580 THAT? 4805 03:01:08,580 --> 03:01:10,448 FOR EXAMPLEN MED SCHOOL, BECAUSE 4806 03:01:10,448 --> 03:01:12,517 NIAAA IS INTERESTED IN 4807 03:01:12,517 --> 03:01:14,385 CURRICULUM AROUND ALCOHOL MORE 4808 03:01:14,385 --> 03:01:15,253 GENERALLY AND, YOU KNOW, 30 4809 03:01:15,253 --> 03:01:16,788 MINUTES IS MAYBE ALL YOU GET IN 4810 03:01:16,788 --> 03:01:18,423 THE COURSE OF THE WHOLE FOUR 4811 03:01:18,423 --> 03:01:20,825 YEARS THAT YOU COULD DEVOTE TO 4812 03:01:20,825 --> 03:01:22,827 ALCOHOL. 4813 03:01:22,827 --> 03:01:24,462 SO WHAT IS DOABLE? 4814 03:01:24,462 --> 03:01:26,197 >> YEAH, I THINK THAT'S HARD. 4815 03:01:26,197 --> 03:01:27,932 I DON'T FULLY UNDERSTAND IT 4816 03:01:27,932 --> 03:01:28,299 EITHER. 4817 03:01:28,299 --> 03:01:29,267 I THINK EACH MEDICAL SCHOOL 4818 03:01:29,267 --> 03:01:32,737 THERE'S A LOT OF JOCKEYING 4819 03:01:32,737 --> 03:01:36,274 BETWEEN GROUPS TO PUT THEIR 4820 03:01:36,274 --> 03:01:38,476 TOPICS TO THE TOP OF THE TOP OF 4821 03:01:38,476 --> 03:01:38,810 MIND. 4822 03:01:38,810 --> 03:01:41,412 I THINK WHAT PROBABLY HAS TO 4823 03:01:41,412 --> 03:01:43,481 HAPPEN IS SOMETHING AT POLICY 4824 03:01:43,481 --> 03:01:45,383 LEVEL WHICH MANDATES DISABILITY 4825 03:01:45,383 --> 03:01:47,118 CURRICULUM FOR A CERTAIN AMOUNT 4826 03:01:47,118 --> 03:01:49,621 OF TIME DURING MEDICAL SCHOOL 4827 03:01:49,621 --> 03:01:51,489 THAT'S DEDICATED TO THAT. 4828 03:01:51,489 --> 03:01:55,193 I THINK OTHERWISE IT'S A VERY 4829 03:01:55,193 --> 03:01:56,594 MEDICAL SCHOOL-SPECIFIC THING. 4830 03:01:56,594 --> 03:02:00,999 I'M AT NORTHWESTERN, WAS AT 4831 03:02:00,999 --> 03:02:03,401 NORTHWESTERN, STAYING THERE AS 4832 03:02:03,401 --> 03:02:04,169 ADJUNCT PROFESSOR BUT I THINK A 4833 03:02:04,169 --> 03:02:06,571 LOT TENDS TO BE LED BY STUDENTS, 4834 03:02:06,571 --> 03:02:09,307 SO AT NORTHWESTERN THERE'S A 4835 03:02:09,307 --> 03:02:13,344 PRETTY ACTIVE STUDENT GROUP 4836 03:02:13,344 --> 03:02:14,646 INTERESTS IN PROMOTING 4837 03:02:14,646 --> 03:02:16,614 DISABILITY EDUCATION SO I CAN 4838 03:02:16,614 --> 03:02:18,149 GET -- IT TENDS TO START WITH 4839 03:02:18,149 --> 03:02:20,785 THEM BUT, AGAIN, THAT'S REALLY 4840 03:02:20,785 --> 03:02:21,786 VARIABLE. 4841 03:02:21,786 --> 03:02:24,055 SO I THINK IT'S HARD TO KNOW 4842 03:02:24,055 --> 03:02:26,357 PLACE TO PLACE. 4843 03:02:26,357 --> 03:02:27,559 IN PEDIATRIC RESIDENCY THERE'S 4844 03:02:27,559 --> 03:02:29,661 ONE MONTH THAT NEEDS TO BE 4845 03:02:29,661 --> 03:02:31,062 DEVOTED TO DEVELOPMENT AND 4846 03:02:31,062 --> 03:02:33,031 LEARNING ABOUT CHILD BEHAVIOR 4847 03:02:33,031 --> 03:02:34,032 AND DEVELOPMENT. 4848 03:02:34,032 --> 03:02:35,667 BUT, AGAIN, THAT'S PRETTY 4849 03:02:35,667 --> 03:02:36,434 VARIABLE. 4850 03:02:36,434 --> 03:02:37,535 THERE'S NOT A STANDARDIZED 4851 03:02:37,535 --> 03:02:39,938 CURRICULUM THAT COMES WITH THAT. 4852 03:02:39,938 --> 03:02:42,340 SO, I DON'T KNOW IF THAT ANSWERS 4853 03:02:42,340 --> 03:02:44,742 YOUR QUESTION BUT I THINK THERE 4854 03:02:44,742 --> 03:02:50,648 IS NO STANDARD AMOUNT OF TIME 4855 03:02:50,648 --> 03:02:52,851 FROM WHAT I'VE SEEN. 4856 03:02:52,851 --> 03:02:55,854 >> WOULD YOU LIKE TO COMMENT? 4857 03:02:55,854 --> 03:02:58,289 >> MARY-KATE WEBER, CENTERS FOR 4858 03:02:58,289 --> 03:03:00,391 DISEASE CONTROL, AND WE'VE 4859 03:03:00,391 --> 03:03:02,360 FUNDED AMERICAN ACADEMY OF 4860 03:03:02,360 --> 03:03:06,197 PEDIATRICS TO EXPLORE HOW BEST 4861 03:03:06,197 --> 03:03:07,966 TO REACH PEDIATRIC PROVIDERS, 4862 03:03:07,966 --> 03:03:09,601 MAINLY IN PRIMARY CARE. 4863 03:03:09,601 --> 03:03:13,104 HOWEVER, WE'VE DONE SOME WORK 4864 03:03:13,104 --> 03:03:14,839 WITH RESIDENT TRAINING. 4865 03:03:14,839 --> 03:03:17,141 WE'VE HAD A RESIDENT TRAINING 4866 03:03:17,141 --> 03:03:18,343 PROGRAM WHERE PRECEPTORS ARE 4867 03:03:18,343 --> 03:03:21,079 TRAINED AND THEN WORK WITH A 4868 03:03:21,079 --> 03:03:24,382 GROUP OF STUDENTS TO LEARN MORE 4869 03:03:24,382 --> 03:03:26,150 ABOUT FETAL ALCOHOL SPECTRUM 4870 03:03:26,150 --> 03:03:29,220 DISORDERS AND HAVE DONE THAT FOR 4871 03:03:29,220 --> 03:03:31,723 A NUMBER OF YEARS, THAT ROUND OF 4872 03:03:31,723 --> 03:03:33,291 WORK HAS SINCE ENDED. 4873 03:03:33,291 --> 03:03:35,026 BUT WE DEFINITELY HAVE TRIED TO 4874 03:03:35,026 --> 03:03:38,429 THINK OF UNIQUE WAYS TO REACH 4875 03:03:38,429 --> 03:03:40,498 FOLKS EARLIER ON IN THEIR 4876 03:03:40,498 --> 03:03:42,901 CAREERS THROUGH THOSE EFFORTS. 4877 03:03:42,901 --> 03:03:44,202 WE'VE ALSO HAD AN ECHO PROGRAM 4878 03:03:44,202 --> 03:03:45,203 AS WELL. 4879 03:03:45,203 --> 03:03:48,940 A LITTLE BIT SMALLER SCALE THAN 4880 03:03:48,940 --> 03:03:50,909 HRSA'S, BUT DEFINITELY ANOTHER 4881 03:03:50,909 --> 03:03:57,015 WAY TO REACH PEDIATRICIANS WHO 4882 03:03:57,015 --> 03:03:57,682 ARE ACTUALLY IN PRACTICE. 4883 03:03:57,682 --> 03:04:01,619 >> THANK YOU FOR YOUR QUESTION. 4884 03:04:01,619 --> 03:04:03,588 ANOTHER PIECE IS LOOKING BACK 4885 03:04:03,588 --> 03:04:06,991 OVER THE YEARS, WE HAD THE FIRST 4886 03:04:06,991 --> 03:04:07,825 MEDICAL SCHOOL CURRICULUM, 4887 03:04:07,825 --> 03:04:09,727 ACTUALLY I USED TO TEACH A 4888 03:04:09,727 --> 03:04:11,796 COURSE AT NORTHWESTERN, AND AT 4889 03:04:11,796 --> 03:04:15,333 GEORGETOWN, SO OVER THE YEARS 4890 03:04:15,333 --> 03:04:18,269 AND CDC WE ACTUALLY WROTE 4891 03:04:18,269 --> 03:04:22,106 LANGUAGE AND GOT FUNDING, YOU 4892 03:04:22,106 --> 03:04:32,617 KNOW, FOR CDC TO EDUCATE MEDICAL 4893 03:04:32,617 --> 03:04:34,585 AND ALLIED PROFESSIONALS AND 4894 03:04:34,585 --> 03:04:36,988 STUDENTS, WORTHWHILE EFFORTS. 4895 03:04:36,988 --> 03:04:40,625 I PARTICIPATED WITH AAP, WITH 4896 03:04:40,625 --> 03:04:42,794 THEIR ECHO, AN INCREDIBLE MODEL. 4897 03:04:42,794 --> 03:04:46,464 BUT THING I WANT TO SAY IS THAT 4898 03:04:46,464 --> 03:04:51,169 JUST SITTING A T THESE TABLES 4899 03:04:51,169 --> 03:04:53,237 FOR MANY YEARS UNLESS THERE'S 4900 03:04:53,237 --> 03:04:55,773 QUESTIONS ON THE EXAMS, YOU 4901 03:04:55,773 --> 03:04:59,811 KNOW, AND A REAL PUSH TO GET 4902 03:04:59,811 --> 03:05:03,414 THIS EDUCATION, NOT JUST FASD, 4903 03:05:03,414 --> 03:05:05,516 ALSO ON ADDICTION, IT JUST -- 4904 03:05:05,516 --> 03:05:07,385 YOU DO THESE PIECEMEAL THINGS, 4905 03:05:07,385 --> 03:05:08,987 GREAT EFFORTS, GREAT EFFORTS, SO 4906 03:05:08,987 --> 03:05:11,089 I'M NOT TRYING TO TAKE ANYTHING 4907 03:05:11,089 --> 03:05:12,523 AWAY, BUT WE'VE NEVER BEEN ABLE 4908 03:05:12,523 --> 03:05:15,693 TO DO THE FULL NATIONAL PUSH TO 4909 03:05:15,693 --> 03:05:17,662 ENSURE THAT ALL MEDICAL AND 4910 03:05:17,662 --> 03:05:18,763 ALLIED HEALTH STUDENTS AND 4911 03:05:18,763 --> 03:05:20,431 PROFESSIONALS ARE LEARNING THIS 4912 03:05:20,431 --> 03:05:28,940 BUT I WILL SAY NIAAA, HRSA, 4913 03:05:28,940 --> 03:05:33,311 SAMHSA, CDC HAS THE COURSES, 4914 03:05:33,311 --> 03:05:36,047 COURSES DONE, YOU KNOW, THERE'S 4915 03:05:36,047 --> 03:05:37,815 CMEs AVAILABLE. 4916 03:05:37,815 --> 03:05:39,784 I GUESS THE FRUSTRATION AS 4917 03:05:39,784 --> 03:05:40,985 PERSON WITH LIVED EXPERIENCE IS 4918 03:05:40,985 --> 03:05:44,055 THE PUSH TO GET PEOPLE TO USE 4919 03:05:44,055 --> 03:05:45,556 THEM AND I DON'T THINK IT'S 4920 03:05:45,556 --> 03:05:47,525 GOING TO HAPPEN UNLESS THERE'S 4921 03:05:47,525 --> 03:05:50,928 SOME SORT OF OUTCOME, MEASURABLE 4922 03:05:50,928 --> 03:05:51,329 OUTCOME. 4923 03:05:51,329 --> 03:05:52,663 SO JUST WANTED TO MENTION THAT. 4924 03:05:52,663 --> 03:05:53,798 BUT THANK YOU. 4925 03:05:53,798 --> 03:05:54,866 I LOVED YOUR QUESTION. 4926 03:05:54,866 --> 03:05:55,967 >> THANK YOU. 4927 03:05:55,967 --> 03:05:57,702 WE HAVE SEVERAL QUESTIONS, I'M 4928 03:05:57,702 --> 03:06:01,339 HAPPY TO HAVE DISCUSSION. 4929 03:06:01,339 --> 03:06:06,677 I WILL GO WITH KEN, CHRISTINE. 4930 03:06:06,677 --> 03:06:08,079 >> I APPRECIATE THIS 4931 03:06:08,079 --> 03:06:09,180 CONVERSATION AS WELL. 4932 03:06:09,180 --> 03:06:11,149 I'M A PEDIATRICIAN AS WELL. 4933 03:06:11,149 --> 03:06:13,818 AND I MUST TELL YOU, I WOULD 4934 03:06:13,818 --> 03:06:16,120 BRING UP A RATHER CONTROVERSIAL 4935 03:06:16,120 --> 03:06:17,088 IDEA HERE. 4936 03:06:17,088 --> 03:06:19,957 I AS A PEDIATRICIAN THINK THAT 4937 03:06:19,957 --> 03:06:21,392 WE HAVE FAILED MISERABLY, AS FAR 4938 03:06:21,392 --> 03:06:24,228 AS TRYING TO GET PHYSICIANS, IN 4939 03:06:24,228 --> 03:06:25,997 PARTICULAR PEDIATRICIANS 4940 03:06:25,997 --> 03:06:27,965 INVOLVED IN THIS DISORDER. 4941 03:06:27,965 --> 03:06:30,802 AND SO I WOULD -- I AM PUSHING 4942 03:06:30,802 --> 03:06:34,405 AT THIS POINT TO BRING IN OTHER 4943 03:06:34,405 --> 03:06:36,607 PEOPLE, LIKE SOCIAL WORKERS, AND 4944 03:06:36,607 --> 03:06:37,942 PUBLIC HEALTH WORKERS, AND 4945 03:06:37,942 --> 03:06:42,080 PEOPLE THAT CARE ABOUT THIS IS 4946 03:06:42,080 --> 03:06:42,346 DISORDER. 4947 03:06:42,346 --> 03:06:45,917 I DON'T THINK, AND THIS IS WAY 4948 03:06:45,917 --> 03:06:49,187 OUT, A COMMENT BY ME, I DON'T 4949 03:06:49,187 --> 03:06:51,622 THINK WE CARE, TALKING ABOUT 4950 03:06:51,622 --> 03:06:53,458 PEDIATRICIANS NOW, I DON'T THINK 4951 03:06:53,458 --> 03:06:55,426 WE CARE ABOUT THIS DISORDER. 4952 03:06:55,426 --> 03:06:57,728 I'M MOVING AWAY FROM THE MEDICAL 4953 03:06:57,728 --> 03:06:59,030 PROFESSION AS FAR AS THIS IS 4954 03:06:59,030 --> 03:07:00,898 CONCERNED TO BRING IN PEOPLE IN 4955 03:07:00,898 --> 03:07:02,633 PUBLIC HEALTH AND PEOPLE WHO ARE 4956 03:07:02,633 --> 03:07:07,138 REALLY COMMITTED TO THIS 4957 03:07:07,138 --> 03:07:08,372 DISORDER. 4958 03:07:08,372 --> 03:07:08,773 >> THANK YOU. 4959 03:07:08,773 --> 03:07:11,943 I THINK IT'S QUITE SAD FACT. 4960 03:07:11,943 --> 03:07:13,711 I'M NOT VERY SAD PERSON BUT I 4961 03:07:13,711 --> 03:07:17,949 THINK IT'S SAD FACT, LIKE AFTER 4962 03:07:17,949 --> 03:07:20,685 30 YEARS WE UNDERSTAND THAT 4963 03:07:20,685 --> 03:07:21,452 PEDIATRICIANS, IT'S VERY HARD TO 4964 03:07:21,452 --> 03:07:27,358 GET THEM ON BOARD AND KEN JONES 4965 03:07:27,358 --> 03:07:29,994 MOVES TO OTHER DISCIPLINES, MY 4966 03:07:29,994 --> 03:07:31,796 CALL IS FOR PEDIATRICIANS, 4967 03:07:31,796 --> 03:07:33,731 POLLS, HOW TO GET THIS TO 4968 03:07:33,731 --> 03:07:35,366 PEDIATRIC FIELD BECAUSE WE DON'T 4969 03:07:35,366 --> 03:07:36,134 WANT TO MISS IT. 4970 03:07:36,134 --> 03:07:39,403 WE NEED TO FIND A WAY HOW TO DO 4971 03:07:39,403 --> 03:07:40,605 IT. 4972 03:07:40,605 --> 03:07:41,172 ALL RIGHT. 4973 03:07:41,172 --> 03:07:47,378 AND NEXT WE HAVE CHRISTINA, YOUR 4974 03:07:47,378 --> 03:07:48,513 QUESTION? 4975 03:07:48,513 --> 03:07:49,747 >> A QUESTION AND COMMENT. 4976 03:07:49,747 --> 03:07:52,283 SONSY, GREAT TO HEAR ABOUT THE 4977 03:07:52,283 --> 03:07:56,687 WORK YOU'RE DOING THROUGH THE 4978 03:07:56,687 --> 03:07:59,323 PROJECT AND I DO REMEMBER THAT 4979 03:07:59,323 --> 03:08:04,462 WE HAD -- ASPE HAD A MEETING A 4980 03:08:04,462 --> 03:08:10,001 FEW YEARS AGO WHERE WE TALKED A 4981 03:08:10,001 --> 03:08:11,969 LOT ABOUT MESSAGING, TO 4982 03:08:11,969 --> 03:08:13,471 PATIENTS, AND THE FACT THAT A 4983 03:08:13,471 --> 03:08:17,308 LOT OF IT IS AROUND THE NEGATIVE 4984 03:08:17,308 --> 03:08:20,178 OUTCOMES, HOW IT'S GOING TO HURT 4985 03:08:20,178 --> 03:08:23,247 YOUR BABY RATHER THAN POSITIVE 4986 03:08:23,247 --> 03:08:25,216 MESSAGES AND THE PROVIDERS NEED 4987 03:08:25,216 --> 03:08:28,386 TO TALK IN A POSITIVE WAY. 4988 03:08:28,386 --> 03:08:31,122 SO AT THAT TIME SO AT THAT TIME 4989 03:08:31,122 --> 03:08:38,029 DAWN WAS AT THE MEETING, DAWN 4990 03:08:38,029 --> 03:08:40,798 FROM HRSA, I KNOW SHE'S INVOLVED 4991 03:08:40,798 --> 03:08:41,999 IN INFORMATION, HAPPY TO SEE 4992 03:08:41,999 --> 03:08:42,733 THAT DEVELOP. 4993 03:08:42,733 --> 03:08:49,273 I WANTED TO ASK YOU ABOUT THE 4994 03:08:49,273 --> 03:08:50,474 ISSUES AROUND CHILD PROTECTIVE 4995 03:08:50,474 --> 03:08:55,079 SERVICES AND FEAR WOMEN HAVE 4996 03:08:55,079 --> 03:08:59,250 ACCESSING CARE. 4997 03:08:59,250 --> 03:09:04,488 I FEEL LIKE STATES MADE STRIDES, 4998 03:09:04,488 --> 03:09:05,823 PUBLISHED RESOURCES AND 4999 03:09:05,823 --> 03:09:08,659 GUIDANCE, DIFFERENCE BETWEEN CPS 5000 03:09:08,659 --> 03:09:09,760 NOTIFICATION VERSUS REPORTING, 5001 03:09:09,760 --> 03:09:11,495 AND THAT STATES LIKE MINNESOTA 5002 03:09:11,495 --> 03:09:16,000 WHERE IF THE WOMAN STAYS IN 5003 03:09:16,000 --> 03:09:19,604 TREATMENT THEY DO NOT, YOU KNOW, 5004 03:09:19,604 --> 03:09:21,339 REMOVE CHILDREN OR START FULL 5005 03:09:21,339 --> 03:09:22,907 REPORTING BUT I JUST WAS CURIOUS 5006 03:09:22,907 --> 03:09:26,711 IF YOU HEAR ABOUT THAT FROM THE 5007 03:09:26,711 --> 03:09:29,213 PROVIDERS AND, YOU KNOW, THE 5008 03:09:29,213 --> 03:09:30,881 DIFFERENCES BETWEEN STATES IN 5009 03:09:30,881 --> 03:09:32,717 TERMS OF THAT. 5010 03:09:32,717 --> 03:09:34,485 >> ALL RIGHT. 5011 03:09:34,485 --> 03:09:35,253 SO, THANK YOU. 5012 03:09:35,253 --> 03:09:42,293 TWO PART ON THAT. 5013 03:09:42,293 --> 03:09:44,362 FOR THE FIRST ONE, HOW THEY ARE 5014 03:09:44,362 --> 03:09:45,830 REFRAMING SOME OF THIS. 5015 03:09:45,830 --> 03:09:48,733 FOR INSTANCE SOME OF THE -- I'VE 5016 03:09:48,733 --> 03:09:50,568 SAID IN THESE SESSIONS, TALKING 5017 03:09:50,568 --> 03:09:52,970 ABOUT FIRST OF ALL NORMALIZING 5018 03:09:52,970 --> 03:09:55,373 OF ASKING EVERYBODY, NOT JUST 5019 03:09:55,373 --> 03:09:59,110 THOSE WHO YOU THINK MIGHT BE 5020 03:09:59,110 --> 03:10:02,847 DRINKING OR, YOU KNOW, SO 5021 03:10:02,847 --> 03:10:04,615 NORMALIZE THE QUESTIONNAIRE 5022 03:10:04,615 --> 03:10:05,950 ACROSS BOTH PEDIATRICS AND 5023 03:10:05,950 --> 03:10:07,785 PRENATAL, SOME OF THE COMMUNITY 5024 03:10:07,785 --> 03:10:10,054 HEALTH CENTERS THAT HAVE 5025 03:10:10,054 --> 03:10:10,721 PARTICIPATED, THAT HAVE 5026 03:10:10,721 --> 03:10:12,023 ACTUALLY -- THIS IS WHAT THEY 5027 03:10:12,023 --> 03:10:13,691 DECIDED TO DO. 5028 03:10:13,691 --> 03:10:16,627 NOW, THE ISSUE, AND THIS HAS 5029 03:10:16,627 --> 03:10:20,564 COME ACROSS A LOT, HOW DO YOU 5030 03:10:20,564 --> 03:10:23,434 BUILD RELATIONSHIP THAT PATIENT 5031 03:10:23,434 --> 03:10:24,935 RELATIONSHIP OF TRUST AND OH BY 5032 03:10:24,935 --> 03:10:27,672 THE WAY WE'RE IN A STATE THAT 5033 03:10:27,672 --> 03:10:30,641 THE MINUTE THE BABY IS BORN, YOU 5034 03:10:30,641 --> 03:10:33,377 KNOW, WE'RE CALLING CPS, SO SOME 5035 03:10:33,377 --> 03:10:35,880 STATES HAVE DONE, SOME PROVIDERS 5036 03:10:35,880 --> 03:10:39,183 SAID THEY DO, IS THEY DON'T WANT 5037 03:10:39,183 --> 03:10:42,086 TO SURPRISE THE PATIENT. 5038 03:10:42,086 --> 03:10:44,922 SO THEY SAY THAT AS PART OF THE 5039 03:10:44,922 --> 03:10:48,859 CARE AFTER THE CHILD COMES, IS 5040 03:10:48,859 --> 03:10:50,294 THAT THERE WILL BE SOME OTHER 5041 03:10:50,294 --> 03:10:52,263 SERVICES IN ADDITION TO SOME 5042 03:10:52,263 --> 03:10:56,100 PROTECTIVE SERVICES COMING IN. 5043 03:10:56,100 --> 03:11:00,137 IT'S NOT -- IT'S GIVING SOME OF 5044 03:11:00,137 --> 03:11:03,541 THE MANDATORY NEWS BUT ALSO AS 5045 03:11:03,541 --> 03:11:05,943 PART OF THE WHOLE CARE PLAN 5046 03:11:05,943 --> 03:11:06,510 AFTERWARDS. 5047 03:11:06,510 --> 03:11:08,512 BUT THAT IS A CHALLENGE. 5048 03:11:08,512 --> 03:11:10,981 THAT'S ONE OF THE BIGGEST 5049 03:11:10,981 --> 03:11:11,949 CHALLENGES THAT PROVIDERS SAY. 5050 03:11:11,949 --> 03:11:17,655 HOW I DO BUILD THIS TRUST? 5051 03:11:17,655 --> 03:11:19,957 AT THE END SAY THIS IS WHAT'S 5052 03:11:19,957 --> 03:11:21,025 GOING TO HAPPEN, THEY ARE 5053 03:11:21,025 --> 03:11:21,726 INFORMING UP FRONT. 5054 03:11:21,726 --> 03:11:24,895 THIS IS HOW IT WORKS, WHAT WE'RE 5055 03:11:24,895 --> 03:11:28,065 GOING TO DO, PART OF THE AFTER 5056 03:11:28,065 --> 03:11:29,500 CARE, WE'LL BE THERE WITH YOU AS 5057 03:11:29,500 --> 03:11:34,505 WELL, MOTT - NOT JUST THEM. 5058 03:11:34,505 --> 03:11:35,706 UNTIL WE HAVE NATIONAL POLICY OR 5059 03:11:35,706 --> 03:11:41,178 NATIONAL LOU HOW -- LAW HOW TO 5060 03:11:41,178 --> 03:11:44,148 PROTECT IN UTERO AND AFTERWARDS 5061 03:11:44,148 --> 03:11:45,916 TO PROVIDE SERVICES, NOW IT'S 5062 03:11:45,916 --> 03:11:47,551 NOTE JUST PRENATAL PATIENT, NOW 5063 03:11:47,551 --> 03:11:50,187 IT'S FAMILY, IF ANY OF YOU WHO 5064 03:11:50,187 --> 03:11:52,390 ARE WISER THAN I KNOW HOW WE CAN 5065 03:11:52,390 --> 03:11:53,891 ADJUST THAT, HOW WE CAN WORK ON 5066 03:11:53,891 --> 03:11:58,829 THAT, THAT WOULD BE GREAT. 5067 03:11:58,829 --> 03:11:59,597 STILL MAINTAINING CHALLENGES, 5068 03:11:59,597 --> 03:12:01,098 THEY JUST FIND WAYS TO WORK 5069 03:12:01,098 --> 03:12:02,433 AROUND IT DEPENDING ON THE 5070 03:12:02,433 --> 03:12:03,200 STATE. 5071 03:12:03,200 --> 03:12:05,936 >> I WANT TO SAY ONE THING TOO, 5072 03:12:05,936 --> 03:12:07,805 YOU MADE ME THINK HERE. 5073 03:12:07,805 --> 03:12:11,008 A LOT OF KIDS IN FOSTER CARE ARE 5074 03:12:11,008 --> 03:12:13,511 IN FOSTER CARE NOT BECAUSE 5075 03:12:13,511 --> 03:12:16,580 SOMEBODY'S BEATING THEM. 5076 03:12:16,580 --> 03:12:18,115 IT'S BECAUSE OF WHAT THEY 5077 03:12:18,115 --> 03:12:19,216 CLASSIFY AS NEGLECT THAT. 5078 03:12:19,216 --> 03:12:21,318 COULD EASILY BE A WOMAN ON THE 5079 03:12:21,318 --> 03:12:24,588 STREET WITH HER TWO CHILDREN, 5080 03:12:24,588 --> 03:12:25,689 SLEEPING BEHIND THE DUMPSTER, OR 5081 03:12:25,689 --> 03:12:27,591 MAYBE IT'S NOT QUITE THAT BAD 5082 03:12:27,591 --> 03:12:30,728 BUT THEY ARE NOT IN A VERY GOOD 5083 03:12:30,728 --> 03:12:30,995 SITUATION. 5084 03:12:30,995 --> 03:12:32,163 SO THE AGENCY DOESN'T KNOW WHAT 5085 03:12:32,163 --> 03:12:33,030 THEY SHOULD DO. 5086 03:12:33,030 --> 03:12:36,100 WHAT SHOULD THEY DO WITH THESE 5087 03:12:36,100 --> 03:12:37,301 KIDS? 5088 03:12:37,301 --> 03:12:39,170 AND/OR MAYBE THEY ARE IN THE 5089 03:12:39,170 --> 03:12:43,207 HOME BUT IT'S A CRUMMY HOME, HOE 5090 03:12:43,207 --> 03:12:44,608 DON'T HAVE ENOUGH FOOD. 5091 03:12:44,608 --> 03:12:45,709 AGENCY DOESN'T KNOW WHAT TO DO 5092 03:12:45,709 --> 03:12:49,513 SO THERE'S A REAL NEED TO HAVE 5093 03:12:49,513 --> 03:12:50,314 COLLABORATION WITH OTHER 5094 03:12:50,314 --> 03:12:51,849 AGENCIES IN ORDER TO PROVIDE 5095 03:12:51,849 --> 03:12:53,050 WHAT THESE FAMILIES NEED AND IF 5096 03:12:53,050 --> 03:12:55,152 THEY HAD WHAT THEY NEEDED THEY 5097 03:12:55,152 --> 03:12:57,922 WOULDN'T BE GOING INTO FOSTER 5098 03:12:57,922 --> 03:12:58,122 CARE. 5099 03:12:58,122 --> 03:12:59,857 >> THANK YOU. 5100 03:12:59,857 --> 03:13:02,993 I THINK WE DO HEAR DIFFICULTS TO 5101 03:13:02,993 --> 03:13:04,895 ENGAGE PEDIATRICIANS BUT ON THE 5102 03:13:04,895 --> 03:13:07,531 OTHER HAND CAN HEAR SIGNIFICANT 5103 03:13:07,531 --> 03:13:11,068 CONCERN ABOUT LAWS AND REPORTING 5104 03:13:11,068 --> 03:13:13,537 LAW WHICH CAN BE BARRIER AND CAN 5105 03:13:13,537 --> 03:13:14,772 BE REASON WHY PEDIATRICIANS NOT 5106 03:13:14,772 --> 03:13:18,375 REALLY WILLING TO BE ENGAGED AS 5107 03:13:18,375 --> 03:13:18,576 MUCH. 5108 03:13:18,576 --> 03:13:20,678 I KNOW THAT CJ HAS BEEN WAITING 5109 03:13:20,678 --> 03:13:21,745 PATIENTLY WITH YOUR QUESTION. 5110 03:13:21,745 --> 03:13:24,281 THIS IS LAST QUESTION BEFORE WE 5111 03:13:24,281 --> 03:13:26,717 GO TO NEXT PRESENTATIONS BUT WE 5112 03:13:26,717 --> 03:13:28,319 WILL HAVE ANOTHER DISCUSSION 5113 03:13:28,319 --> 03:13:28,652 SESSION. 5114 03:13:28,652 --> 03:13:33,924 SO CJ, THIS IS YOUR TIME. 5115 03:13:33,924 --> 03:13:37,661 >> ACTUALLY MY QUESTION WAS 5116 03:13:37,661 --> 03:13:38,128 ANSWERED. 5117 03:13:38,128 --> 03:13:39,063 WHY BOTHER COMING FORWARD WHEN 5118 03:13:39,063 --> 03:13:45,970 THEY ARE JUST GOING TO TAKE BABY 5119 03:13:45,970 --> 03:13:46,170 AWAY. 5120 03:13:46,170 --> 03:13:49,673 VERY FEW PEOPLE NEED TO HAVE 5121 03:13:49,673 --> 03:13:56,146 BABY TAKEN AWAY FOR DRINKING. 5122 03:13:56,146 --> 03:13:58,749 I THINK ALSO THAT A LOT OF 5123 03:13:58,749 --> 03:14:06,023 COMMENTS WERE MADE ABOUT 5124 03:14:06,023 --> 03:14:10,060 PREVENTION AND PRENATAL CARE. 5125 03:14:10,060 --> 03:14:12,229 BUT BABIES GO TO CHILDREN, TO 5126 03:14:12,229 --> 03:14:13,230 TEENS, WHO GROW INTO ADULT. 5127 03:14:13,230 --> 03:14:17,835 THE OTHER THING I WAS HEARING 5128 03:14:17,835 --> 03:14:23,841 WAS JUST THE AMOUNT OF, SORRY, 5129 03:14:23,841 --> 03:14:26,277 AMOUNT OF LACK OF SERVICES THERE 5130 03:14:26,277 --> 03:14:31,849 ARE IN SCHOOLS, HOW PEOPLE END 5131 03:14:31,849 --> 03:14:35,119 UP IN JAIL, AND IT'S A TERRIBLE 5132 03:14:35,119 --> 03:14:38,856 END TO A STORY IN THE MIDDLE OF 5133 03:14:38,856 --> 03:14:39,823 A LIFE. 5134 03:14:39,823 --> 03:14:43,093 I HAD A QUESTION ABOUT, YOU 5135 03:14:43,093 --> 03:14:46,931 KNOW, IS THERE ANY WAY TO 5136 03:14:46,931 --> 03:14:48,799 CIRCUMVENT THE STATES THAT TAKE 5137 03:14:48,799 --> 03:14:50,234 BABY AWAY? 5138 03:14:50,234 --> 03:14:52,536 LIKE I THOUGHT THE CHILD WAS 5139 03:14:52,536 --> 03:14:52,937 IMPORTANT. 5140 03:14:52,937 --> 03:14:54,505 THE CHILD AND FAMILY ARE 5141 03:14:54,505 --> 03:14:55,139 IMPORTANT. 5142 03:14:55,139 --> 03:14:56,040 HOW ARE YOU SUPPOSED TO LIKE 5143 03:14:56,040 --> 03:14:58,909 TAKE CARE OF A CHILD IF YOU GIVE 5144 03:14:58,909 --> 03:15:00,644 IT TO FOSTER CARE AND FOSTER 5145 03:15:00,644 --> 03:15:02,713 CARE IS NOT A HAPPY PLACE A LOT 5146 03:15:02,713 --> 03:15:03,047 OF TIME. 5147 03:15:03,047 --> 03:15:08,886 I DON'T KNOW IF ANYONE KNOWS 5148 03:15:08,886 --> 03:15:09,186 THIS. 5149 03:15:09,186 --> 03:15:12,723 A TON OF ABUSE HAPPENS IN FOSTER 5150 03:15:12,723 --> 03:15:14,458 CAREA SHIT TON, THAT YOU WOULD 5151 03:15:14,458 --> 03:15:16,760 TAKE BABY AWAY FROM THE FIRST 5152 03:15:16,760 --> 03:15:21,799 PLACE, BECAUSE MOM SAYS I NEED 5153 03:15:21,799 --> 03:15:22,132 HELP. 5154 03:15:22,132 --> 03:15:23,100 LIKE IT'S INSANE. 5155 03:15:23,100 --> 03:15:27,171 I THINK THAT WAS MY 5156 03:15:27,171 --> 03:15:27,571 QUESTION/COMMENT. 5157 03:15:27,571 --> 03:15:30,774 >> THANK YOU. 5158 03:15:30,774 --> 03:15:31,875 >> THANK YOU, CJ. 5159 03:15:31,875 --> 03:15:35,713 IF WE DON'T HAVE URGENT 5160 03:15:35,713 --> 03:15:41,185 QUESTIONS ON VIDEOCAST, NEXT 5161 03:15:41,185 --> 03:15:45,556 PRESENTATIONS, NEXT 5162 03:15:45,556 --> 03:15:47,091 PRESENTATIONS FROM SAMHSA. 5163 03:15:47,091 --> 03:15:50,494 WE HAVE TEN MINUTES FOR EACH 5164 03:15:50,494 --> 03:15:51,495 REPORT. 5165 03:15:51,495 --> 03:15:58,802 THEN WE HAVE TIME FOR 5166 03:15:58,802 --> 03:15:59,103 DISCUSSION. 5167 03:15:59,103 --> 03:16:06,377 >> JON DUNBAR-COOPER FROM 5168 03:16:06,377 --> 03:16:09,413 SAMHSA. 5169 03:16:09,413 --> 03:16:10,080 >> IT'S ANOTHER TECHNICAL ISSUE 5170 03:16:10,080 --> 03:16:15,452 BUT IT SHOULD BE FIXED VERY 5171 03:16:15,452 --> 03:16:15,686 QUICKLY. 5172 03:16:15,686 --> 03:16:17,688 >> WELCOME TO THE PUBLIC MEETING 5173 03:16:17,688 --> 03:16:18,722 FOR 2021. 5174 03:16:18,722 --> 03:16:24,428 I'M GOING TO SHARE THREE SAMHSA 5175 03:16:24,428 --> 03:16:34,972 RESOURCES WITH YOU, AND INDIANA 5176 03:16:38,709 --> 03:16:39,977 FASD PREVENTION PROGRAM. 5177 03:16:39,977 --> 03:16:40,310 HI, EVERYBODY. 5178 03:16:40,310 --> 03:16:43,714 I HAVE TO SAY THAT SAMHSA DOES 5179 03:16:43,714 --> 03:16:49,386 NOT HAVE AN FASD PORTFOLIO. 5180 03:16:49,386 --> 03:16:51,355 WE DO HAVE BEHAVIOR HEALTH 5181 03:16:51,355 --> 03:16:52,990 RESOURCES AVAILABLE FOR 5182 03:16:52,990 --> 03:16:57,161 CLINICIANS AND FAMILIES AND 5183 03:16:57,161 --> 03:16:58,262 PEOPLE WITH FASD AND SUPPORTERS 5184 03:16:58,262 --> 03:16:59,596 AND SO FORTH. 5185 03:16:59,596 --> 03:17:03,100 I'M GOING TO GIVE BEHAVIORAL 5186 03:17:03,100 --> 03:17:05,703 HEALTH RESOURCES SAMHSA HAS. 5187 03:17:05,703 --> 03:17:08,238 FIRST IS SBIRT, WHERE HOSPITAL 5188 03:17:08,238 --> 03:17:09,773 EMERGENCY ROOMS, TRAUMA CENTERS 5189 03:17:09,773 --> 03:17:12,943 AND COMMUNITY SETTINGS PROVIDE 5190 03:17:12,943 --> 03:17:13,610 OPPORTUNITIES FOR EARLY 5191 03:17:13,610 --> 03:17:18,082 INTERVENTION, WITH AT RISK 5192 03:17:18,082 --> 03:17:19,283 SUBSTANCE USERS BEFORE MORE 5193 03:17:19,283 --> 03:17:21,552 SEVERE CIRCUMSTANCES OCCUR. 5194 03:17:21,552 --> 03:17:23,754 SEVERAL RENDITIONS OF THIS NOFO, 5195 03:17:23,754 --> 03:17:26,290 AND IN 2024 A NEW ONE CAME OUT 5196 03:17:26,290 --> 03:17:30,094 SO IF YOU CLICK ON THIS LINK AND 5197 03:17:30,094 --> 03:17:31,528 I'M ASSUMING TATIANA THAT THE 5198 03:17:31,528 --> 03:17:37,701 PRESENTATIONS WILL BE AVAILABLE 5199 03:17:37,701 --> 03:17:41,271 FOR EVERYBODY AFTERWARDS. 5200 03:17:41,271 --> 03:17:43,607 YOU CAN FIND OUT MORE ABOUT 5201 03:17:43,607 --> 03:17:47,778 GRANTEES AND ACCESS TO FOLLOWING 5202 03:17:47,778 --> 03:17:49,613 INFORMATION ON THAT LINK. 5203 03:17:49,613 --> 03:17:54,952 WE ALSO HAVE CHANGING HOW WE 5204 03:17:54,952 --> 03:17:56,920 DELIVER TREATMENT AND RECOVERY, 5205 03:17:56,920 --> 03:17:58,122 POWER OF PERCEPTION, 5206 03:17:58,122 --> 03:17:59,456 UNDERSTANDING CHANGING, HOW WE 5207 03:17:59,456 --> 03:18:02,526 DELIVER TREATMENT AND RECOVERY 5208 03:18:02,526 --> 03:18:03,160 SERVICES. 5209 03:18:03,160 --> 03:18:05,162 THIS FOUR-PART WEBCAST SERIES 5210 03:18:05,162 --> 03:18:05,829 EDUCATED HEALTH CARE 5211 03:18:05,829 --> 03:18:08,332 PROFESSIONALS ABOUT IMPORTANCE 5212 03:18:08,332 --> 03:18:10,534 OF USING APPROACHES THAT ARE 5213 03:18:10,534 --> 03:18:11,268 FREE OF DISCRIMINATORY 5214 03:18:11,268 --> 03:18:13,704 ATTITUDES, ET CETERA. 5215 03:18:13,704 --> 03:18:15,072 THEY ARE WEBCASTS, FEATURED 5216 03:18:15,072 --> 03:18:17,975 DISCUSSIONS AMONG EXPERTS IN THE 5217 03:18:17,975 --> 03:18:19,843 FIELD OF ADDICTION, TREATMENT 5218 03:18:19,843 --> 03:18:22,045 RESEARCH AND POLICY AND ACCESS 5219 03:18:22,045 --> 03:18:30,587 AT THIS LINK ON THE SLIDE. 5220 03:18:30,587 --> 03:18:32,656 THESE ARE ADDITIONAL RESOURCES 5221 03:18:32,656 --> 03:18:33,991 FOR TREATMENT AND RECOVERY 5222 03:18:33,991 --> 03:18:34,958 SAMHSA HAS, THESE LINKS WILL 5223 03:18:34,958 --> 03:18:37,928 WORK IF YOU CLICK ON THEM. 5224 03:18:37,928 --> 03:18:39,897 WE ALSO HAVE MEDICATIONS OF 5225 03:18:39,897 --> 03:18:42,533 SUBSTAPS USE DISORDERS. 5226 03:18:42,533 --> 03:18:48,872 WE HAVE SOME NEW NOFOS FOR 5227 03:18:48,872 --> 03:18:50,607 PREGNANT AND POSTPARTUM WOMEN, 5228 03:18:50,607 --> 03:18:51,942 ELIGIBILITY WAS U.S. TERRITORIES 5229 03:18:51,942 --> 03:18:52,576 AND STATES. 5230 03:18:52,576 --> 03:18:56,413 THE ONE BEFORE THAT WAS FOR 5231 03:18:56,413 --> 03:19:02,119 TRIBES, NON-PROFITS, AND SUCH 5232 03:19:02,119 --> 03:19:03,687 ORGANIZATIONS. 5233 03:19:03,687 --> 03:19:06,623 AGAIN, THESE ARE MEDICATIONS 5234 03:19:06,623 --> 03:19:08,358 WE'RE TALKING ABOUT, COUNSELING 5235 03:19:08,358 --> 03:19:09,459 AND BEHAVIORAL HEALTH THERAPY, 5236 03:19:09,459 --> 03:19:10,260 MEDICATION ACE PROVED BY FOOD 5237 03:19:10,260 --> 03:19:12,663 AND DRUG ADMINISTRATION AND LINK 5238 03:19:12,663 --> 03:19:13,864 TO CO-OCCURRING DISORDERS THAT'S 5239 03:19:13,864 --> 03:19:17,734 ON THE BOTTOM OF THE SLIDE. 5240 03:19:17,734 --> 03:19:20,571 5241 03:19:20,571 --> 03:19:23,507 5242 03:19:23,507 --> 03:19:24,341 WE HAVE GENDER-BASED VIOLENCE 5243 03:19:24,341 --> 03:19:27,144 IMPLEMENT OF THE U.S. NATIONAL 5244 03:19:27,144 --> 03:19:29,112 PLAN, 3R0EUDING AN OPPORTUNITY 5245 03:19:29,112 --> 03:19:31,481 TO RAISE AWARENESS ABOUT LINK 5246 03:19:31,481 --> 03:19:33,050 BETWEEN GBV AND MENTAL HEALTH 5247 03:19:33,050 --> 03:19:36,553 AND SUBSTANCE USE AND TAKE 5248 03:19:36,553 --> 03:19:37,754 FURTHER ACTION, I NEED NOT 5249 03:19:37,754 --> 03:19:38,755 EXPLAIN WHY THIS IS IMPORTANT TO 5250 03:19:38,755 --> 03:19:45,529 THE FIELD BUT IT IS. 5251 03:19:45,529 --> 03:19:46,830 SAMHSA JOINED OPERATING 5252 03:19:46,830 --> 03:19:52,202 DIVISIONS, ALONG WITH OTHER 5253 03:19:52,202 --> 03:19:53,503 FEDERAL AGENCIES IMPLEMENTING 5254 03:19:53,503 --> 03:19:54,171 INTERDEPARTMENTAL APPROACH, 5255 03:19:54,171 --> 03:19:56,139 SAMHSA ENGAGED WITH EXTERNAL 5256 03:19:56,139 --> 03:19:57,574 PARTNERS AND STAKEHOLDERS 5257 03:19:57,574 --> 03:19:59,776 INCLUDING THOSE WITH LIVED 5258 03:19:59,776 --> 03:20:02,079 EXPERIENCE TO ENHANCE AGENCY'S 5259 03:20:02,079 --> 03:20:02,279 WORK. 5260 03:20:02,279 --> 03:20:04,047 ADDITIONAL INFORMATION IS ON THE 5261 03:20:04,047 --> 03:20:08,185 LINK BELOW. 5262 03:20:08,185 --> 03:20:14,291 WE ALSO HAVE A SERIES ON EARLY 5263 03:20:14,291 --> 03:20:15,626 SERIOUS MENTAL ILLNESS LOCATOR, 5264 03:20:15,626 --> 03:20:16,393 CONFIDENTIAL SOURCE OF 5265 03:20:16,393 --> 03:20:18,028 INFORMATION FOR PERSONS AND 5266 03:20:18,028 --> 03:20:19,796 FAMILY MEMBERS WHO SEEK 5267 03:20:19,796 --> 03:20:20,364 TREATMENT FACILITIES IN THE 5268 03:20:20,364 --> 03:20:25,903 UNITED STATES OR U.S. 5269 03:20:25,903 --> 03:20:32,576 TERRITORIES. 5270 03:20:32,576 --> 03:20:35,545 SCHIZOPHRENIA, PSYCHOSIS. 5271 03:20:35,545 --> 03:20:45,188 SUBMIT REQUEST TO ESMI@SAMHSA.H. 5272 03:20:45,188 --> 03:20:45,889 MENTAL HEALTH AWARENESS 5273 03:20:45,889 --> 03:20:52,262 TRAINING, PREMIUMS 5274 03:20:52,262 --> 03:20:54,031 I NDIVIDUALS -- PREPARES 5275 03:20:54,031 --> 03:20:55,999 INDIVIDUALS TO RESPOND 5276 03:20:55,999 --> 03:20:58,201 APPROPRIATELY PARTICULARLY THOSE 5277 03:20:58,201 --> 03:21:00,804 ARE SERIOUS DISTURBANCES. 5278 03:21:00,804 --> 03:21:03,106 INDIVIDUALS RECEIVE KNOWLEDGE, 5279 03:21:03,106 --> 03:21:04,107 SKILLS, CONFIDENCE, RESOURCES TO 5280 03:21:04,107 --> 03:21:05,275 ENGAGE WITH SOMEONE EXPERIENCING 5281 03:21:05,275 --> 03:21:06,710 MENTAL HEALTH AND/OR SUBSTANCE 5282 03:21:06,710 --> 03:21:09,346 USE CHALLENGES. 5283 03:21:09,346 --> 03:21:11,315 SO THIS IS A TOOL THAT 5284 03:21:11,315 --> 03:21:12,716 SUPPORTERS OF INDIVIDUALS WITH 5285 03:21:12,716 --> 03:21:14,818 FASD, FAMILY MEMBERS AND SO 5286 03:21:14,818 --> 03:21:17,988 FORTH CAN REALLY USE AND 5287 03:21:17,988 --> 03:21:18,288 UNDERSTAND. 5288 03:21:18,288 --> 03:21:27,531 AGAIN, THERE'S A LINK TO THAT 5289 03:21:27,531 --> 03:21:28,432 RESOURCE. 5290 03:21:28,432 --> 03:21:30,067 WE HAVE PAIMI TO PROTECT AND 5291 03:21:30,067 --> 03:21:36,940 ADVOCATE FOR RIGHTS OF ADULT WAS 5292 03:21:36,940 --> 03:21:38,275 SERIOUS MENTAL ILLNESS THROUGH 5293 03:21:38,275 --> 03:21:40,377 ACTIVITIES TO ENSURE ENFORCEMENT 5294 03:21:40,377 --> 03:21:44,848 OF CONSTITUTION AND FEDERAL AND 5295 03:21:44,848 --> 03:21:50,554 STATE STATUTES, ADDITIONAL GRANT 5296 03:21:50,554 --> 03:21:51,421 INFORMATION ACCESSED AS 5297 03:21:51,421 --> 03:21:52,923 FOLLOWING URL. 5298 03:21:52,923 --> 03:22:03,433 WE HAVE A NATIONAL NETWORK TO 5299 03:22:03,734 --> 03:22:06,970 ELIMINATE DISPARITIES, TO 5300 03:22:06,970 --> 03:22:08,505 ELIMINATE IN BEHAVIORAL HEALTH, 5301 03:22:08,505 --> 03:22:09,139 NETWORK OF COMMUNITY-BASED 5302 03:22:09,139 --> 03:22:09,940 ORGANIZATIONS FOCUS ON MENTAL 5303 03:22:09,940 --> 03:22:11,808 HEALTH AND SUBSTANCE USE ISSUES 5304 03:22:11,808 --> 03:22:19,049 OF DIVERSE RACIAL AND ETHNIC 5305 03:22:19,049 --> 03:22:19,616 COMMUNITIES. 5306 03:22:19,616 --> 03:22:21,685 CONTACT NNE DID TO REQUEST 5307 03:22:21,685 --> 03:22:22,986 INFORMATION, TRAINING, TECHNICAL 5308 03:22:22,986 --> 03:22:26,490 ASSISTANCE TO PROMOTE BEHAVIORAL 5309 03:22:26,490 --> 03:22:27,491 HEALTH EQUITY. 5310 03:22:27,491 --> 03:22:29,026 SAMHSA IS REALLY INTO 5311 03:22:29,026 --> 03:22:33,263 ELIMINATING DISPARITIES AND 5312 03:22:33,263 --> 03:22:34,264 BEHAVIORAL HEALTH. 5313 03:22:34,264 --> 03:22:37,768 IT'S WOVEN THROUGH OUR TECHNICAL 5314 03:22:37,768 --> 03:22:39,936 ASSISTANCE AND TRAINING. 5315 03:22:39,936 --> 03:22:42,339 WE ALSO HAVE EARLY CHILDHOOD 5316 03:22:42,339 --> 03:22:48,578 MENTAL HEALTH PROGRAMS. 5317 03:22:48,578 --> 03:22:49,813 CURRENTLY THREE, CENTER OF 5318 03:22:49,813 --> 03:22:50,680 EXCELLENCE, CLICK THE FOLLOWING 5319 03:22:50,680 --> 03:22:53,950 LINKS TO GET MORE INFORMATION 5320 03:22:53,950 --> 03:22:55,352 ABOUT THOSE PROGRAMS. 5321 03:22:55,352 --> 03:22:59,656 WE HAVE A NATIONAL CHILD 5322 03:22:59,656 --> 03:23:00,824 TRAUMATIC STRESS INITIATIVE. 5323 03:23:00,824 --> 03:23:02,926 IMPROVES TREATMENT AND SERVICES 5324 03:23:02,926 --> 03:23:04,661 FOR CHILDREN, ADOLESCENTS, 5325 03:23:04,661 --> 03:23:07,064 FAMILY WHO EXPERIENCED TRAUMATIC 5326 03:23:07,064 --> 03:23:07,330 EVENTS. 5327 03:23:07,330 --> 03:23:09,566 AGAIN, AT THE BOTTOM THERE'S THE 5328 03:23:09,566 --> 03:23:13,537 INFORMATION LINK. 5329 03:23:13,537 --> 03:23:15,072 WE ALSO HAVE HOTLINES, 5330 03:23:15,072 --> 03:23:17,240 998-SUICIDE AND CRISIS LIFE 5331 03:23:17,240 --> 03:23:21,845 LINE, NATIONAL DISASTER DISTRESS 5332 03:23:21,845 --> 03:23:22,112 HELP LINE. 5333 03:23:22,112 --> 03:23:24,381 >> THANK YOU FOR COMING TO OUR 5334 03:23:24,381 --> 03:23:26,249 MEETING AND LISTENING TO MY 5335 03:23:26,249 --> 03:23:28,418 PRESENTATION. 5336 03:23:28,418 --> 03:23:31,822 5337 03:23:31,822 --> 03:23:35,859 5338 03:23:35,859 --> 03:23:37,194 >> THANK YOU. 5339 03:23:37,194 --> 03:23:39,029 FOR VIDEOCAST, IF YOU WOULD LIKE 5340 03:23:39,029 --> 03:23:41,331 TO HAVE SLIDES, YOU CAN SEND US 5341 03:23:41,331 --> 03:23:43,967 E-MAIL AND WE WILL PROVIDE YOU 5342 03:23:43,967 --> 03:23:46,603 POWERPOINT HANDOUTS SO YOU CAN 5343 03:23:46,603 --> 03:23:50,340 USE ALL THESE LINKS, ACCESS THIS 5344 03:23:50,340 --> 03:23:51,508 INFORMATION. 5345 03:23:51,508 --> 03:23:53,076 NEXT TWO PRESENTATIONS 5346 03:23:53,076 --> 03:23:54,277 PRE-RECORDED VIDEO, WE WILL 5347 03:23:54,277 --> 03:23:56,113 WATCH PRESENTATIONS AND AFTER 5348 03:23:56,113 --> 03:23:59,716 TWO PRESENTATIONS WE WILL HAVE 5349 03:23:59,716 --> 03:24:01,284 DISCUSSION TIME. 5350 03:24:01,284 --> 03:24:04,554 NOW WE HAVE PRESENTATION AND 5351 03:24:04,554 --> 03:24:06,523 THIS PRESENTATION WILL BE FROM 5352 03:24:06,523 --> 03:24:10,460 CENTERS FOR DISEASE CONTROL AND 5353 03:24:10,460 --> 03:24:11,561 CONTROL. 5354 03:24:11,561 --> 03:24:12,762 SHIN KIM. 5355 03:24:12,762 --> 03:24:14,197 ALL RIGHT. 5356 03:24:14,197 --> 03:24:16,399 >> HELLO, I'M SHIN KIM, I'LL BE 5357 03:24:16,399 --> 03:24:20,871 GIVING AN UPDATE FOR CDC TODAY. 5358 03:24:20,871 --> 03:24:23,206 THIS YEAR DR. COHEN, OUR 5359 03:24:23,206 --> 03:24:24,174 DIRECTOR, PROPOSED PRIORITIES 5360 03:24:24,174 --> 03:24:27,144 FOR CDC TO FOCUS ON TO PROTECT 5361 03:24:27,144 --> 03:24:28,645 HEALTH AND IMPROVE LIVES. 5362 03:24:28,645 --> 03:24:31,181 ON THE HEELS OF COVID READINESS 5363 03:24:31,181 --> 03:24:33,350 AND RESPONSE IS A KEY PRIED. 5364 03:24:33,350 --> 03:24:35,318 WE AIM TO HAVE INFRASTRUCTURE IN 5365 03:24:35,318 --> 03:24:36,987 PLACE TO DETECT HEALTH THREATS 5366 03:24:36,987 --> 03:24:39,055 EARLY AND ENSURE WE'RE READY TO 5367 03:24:39,055 --> 03:24:41,224 RESPOND TO WHAT COMES NEXT. 5368 03:24:41,224 --> 03:24:43,527 NEXT IMPROVING MENTAL HEALTH 5369 03:24:43,527 --> 03:24:44,528 SPECIFICALLY REDUCING SUICIDE 5370 03:24:44,528 --> 03:24:46,363 AND OVERDOSE AND PROTECTING 5371 03:24:46,363 --> 03:24:47,931 YOUTH MENTAL HEALTH. 5372 03:24:47,931 --> 03:24:49,432 THIRD SUPPORTING YOUNG FAMILIES. 5373 03:24:49,432 --> 03:24:51,301 THIS PRIORITY IS MORE BROAD IN 5374 03:24:51,301 --> 03:24:54,037 NATURE BUT FOCUSES ON REDUCING 5375 03:24:54,037 --> 03:24:56,673 MATERNAL MORTALITY, FOSTERING 5376 03:24:56,673 --> 03:24:57,574 POSITIVE CHILDHOOD EXPERIENCES, 5377 03:24:57,574 --> 03:24:59,409 SUPPORTING HEALTH OF CAREGIVERS. 5378 03:24:59,409 --> 03:25:01,511 LASTLY THESE ARE BUILT ON THE 5379 03:25:01,511 --> 03:25:03,346 FOUNDATION OF ONE CDC. 5380 03:25:03,346 --> 03:25:04,981 WE CAN'T MAKE LASTING PROGRESS 5381 03:25:04,981 --> 03:25:07,717 WITHOUT A FOUNDATION AS ONE CDC 5382 03:25:07,717 --> 03:25:10,353 WORKING TOGETHER AS ONE TEAM 5383 03:25:10,353 --> 03:25:18,228 WITHIN ACCIDENT CLINICAL HEALTH 5384 03:25:18,228 --> 03:25:20,297 AND PUBLIC HEALTH EXTERNALLY. 5385 03:25:20,297 --> 03:25:21,865 OUR DIFFERING HAS FIVE FOCUS 5386 03:25:21,865 --> 03:25:23,033 AREAS AND STRATEGIC PLAN. 5387 03:25:23,033 --> 03:25:25,802 AS YOU CAN SEE ADDRESSING AND 5388 03:25:25,802 --> 03:25:27,537 REDUCING IMPACT OF OF SUBSTANCE 5389 03:25:27,537 --> 03:25:28,471 USE AND DISORDER DURING 5390 03:25:28,471 --> 03:25:31,474 PREGNANCY IS ONE OF THEM. 5391 03:25:31,474 --> 03:25:33,009 THESE PROJECTS CLEARLY ALIGN 5392 03:25:33,009 --> 03:25:34,211 WITH PRIORITY AND DEMONSTRATE 5393 03:25:34,211 --> 03:25:39,583 COMMITMENT TO MAKING IMPACT IN 5394 03:25:39,583 --> 03:25:40,784 THIS AREA. 5395 03:25:40,784 --> 03:25:43,753 OUR WORK TO ADDRESS AND REDUCE 5396 03:25:43,753 --> 03:25:47,390 IMPACT OF SUBSTANCE USE AND 5397 03:25:47,390 --> 03:25:48,992 SUBSTANCE USE DISORDER DURING 5398 03:25:48,992 --> 03:25:52,329 PREGNANCY ALIGNS WITH FOCUSING 5399 03:25:52,329 --> 03:25:53,430 ON PREVENTION, IDENTIFICATION, 5400 03:25:53,430 --> 03:25:55,498 AND INTERVENTION, AND 5401 03:25:55,498 --> 03:25:56,499 SURVEILLANCE AND RESEARCH. 5402 03:25:56,499 --> 03:26:00,103 SO I WILL TALK ABOUT SOME 5403 03:26:00,103 --> 03:26:02,272 SURVEILLANCE AND RESEARCH 5404 03:26:02,272 --> 03:26:02,806 ACTIVITIES. 5405 03:26:02,806 --> 03:26:05,709 IN A RECENT SURVEY, A WEB PAGED 5406 03:26:05,709 --> 03:26:07,110 PANEL SURVEY OF CLINICIANS, 5407 03:26:07,110 --> 03:26:07,944 ACTIVELY PROVIDING CARE TO 5408 03:26:07,944 --> 03:26:15,552 PATIENTS IN THE U.S., 1500 5409 03:26:15,552 --> 03:26:17,187 CLINICIANS ANSWERED QUESTIONS 5410 03:26:17,187 --> 03:26:19,256 WITH PREGNANT PATIENTS AND FOUND 5411 03:26:19,256 --> 03:26:20,790 MOST CLINICIANS REPORTED 5412 03:26:20,790 --> 03:26:22,325 SCREENING IN CONDUCTING BRIEF 5413 03:26:22,325 --> 03:26:24,294 INTERVENTIONS, HOWEVER LESS THAN 5414 03:26:24,294 --> 03:26:26,162 HALF FELT CONFIDENT ABOUT 5415 03:26:26,162 --> 03:26:28,598 SCREENING AND ONE-THIRD FELT 5416 03:26:28,598 --> 03:26:30,433 CONFIDENT ABOUT CONDUCTING 5417 03:26:30,433 --> 03:26:32,202 BRIEFED INTERVENTIONS. 5418 03:26:32,202 --> 03:26:33,503 TWO-THIRDS REPORTED USING 5419 03:26:33,503 --> 03:26:35,038 EVIDENCE-BASED TOOLS THAT MET 5420 03:26:35,038 --> 03:26:39,542 CRITERIA RECOMMENDED BY U.S. 5421 03:26:39,542 --> 03:26:41,378 PREVENTION SERVICES TASK FORCE. 5422 03:26:41,378 --> 03:26:45,849 IN THE PREGNANCY RISK ASSESSMENT 5423 03:26:45,849 --> 03:26:51,888 MONITORING SURVEY, PRAMS, THE 5424 03:26:51,888 --> 03:27:02,332 PROPORTION OF RESPONDENTS, 5425 03:27:02,866 --> 03:27:07,037 ADVISED WAS 25.4% AND ADVISED TO 5426 03:27:07,037 --> 03:27:09,706 REDUCE ALCOHOL USE 3.9%. 5427 03:27:09,706 --> 03:27:11,708 APPROXIMATELY 1 IN 5 PERSONS WHO 5428 03:27:11,708 --> 03:27:14,878 REPORTED SUBSTANCE USE DURING 5429 03:27:14,878 --> 03:27:15,645 PREGNANCY ENGAGED IN 5430 03:27:15,645 --> 03:27:20,450 POLYSUBSTANCE USE IN THE SAME 5431 03:27:20,450 --> 03:27:21,351 PRAMS SURVEY. 5432 03:27:21,351 --> 03:27:22,986 CDC HAS BEEN COMMITTED TO 5433 03:27:22,986 --> 03:27:24,521 ADDRESSING ALCOHOL USE DURING 5434 03:27:24,521 --> 03:27:26,089 PREGNANCY AND UNDERSTANDING THE 5435 03:27:26,089 --> 03:27:27,957 POPULATION OF CHILDREN WITH 5436 03:27:27,957 --> 03:27:31,661 FASDs THROUGH PUBLIC HEALTH 5437 03:27:31,661 --> 03:27:36,366 SURVEILLANCE SINCE 1990s. 5438 03:27:36,366 --> 03:27:42,005 WE HAVE COOPERATIVE AGREEMENT TO 5439 03:27:42,005 --> 03:27:44,240 INFORM CHANCE, I-FASD FOR SHORT, 5440 03:27:44,240 --> 03:27:46,409 THE GOAL OF THE PROJECT TO 5441 03:27:46,409 --> 03:27:47,110 ENHANCE UNDERSTANDING OF 5442 03:27:47,110 --> 03:27:48,845 EXISTING HEALTH CARE DATA AND 5443 03:27:48,845 --> 03:27:49,846 EXPLORE OPPORTUNITIES TO 5444 03:27:49,846 --> 03:27:53,249 LEVERAGE DATA FOR PUBLIC HEALTH 5445 03:27:53,249 --> 03:27:53,583 SURVEILLANCE. 5446 03:27:53,583 --> 03:27:54,351 THREE MAIN STRATEGIES, FIRST OF 5447 03:27:54,351 --> 03:27:56,219 WHICH IS TO IDENTIFY DATA 5448 03:27:56,219 --> 03:27:58,288 SOURCES AND DATA ELEMENTS THAT 5449 03:27:58,288 --> 03:28:00,724 MIGHT BE IMPORTANT FOR FASD 5450 03:28:00,724 --> 03:28:02,325 SURVEILLANCE, SECOND IS TO 5451 03:28:02,325 --> 03:28:03,426 CHARACTERIZE AVAILABILITY AND 5452 03:28:03,426 --> 03:28:05,962 QUALITY OF DATA, AND THIRD IS TO 5453 03:28:05,962 --> 03:28:09,366 UNDERSTAND AND DESCRIBE PATHWAYS 5454 03:28:09,366 --> 03:28:11,434 AND PROCESSES THROUGH CARE. 5455 03:28:11,434 --> 03:28:13,737 FINALLY MATERNAL AND INFANT 5456 03:28:13,737 --> 03:28:16,239 CLINICAL NETWORK, A SURVEILLANCE 5457 03:28:16,239 --> 03:28:18,441 SYSTEM OF CLINICAL SITES, 5458 03:28:18,441 --> 03:28:23,146 PURPOSE TO SUSTAIN, IMPROVE, 5459 03:28:23,146 --> 03:28:26,983 EXPAND EXISTING PREGNANT 5460 03:28:26,983 --> 03:28:27,851 PEOPLE-INFANT LINKED 5461 03:28:27,851 --> 03:28:28,718 LONGITUDINAL SURVEILLANCE DATA 5462 03:28:28,718 --> 03:28:31,020 TO IMPROVE DATA QUALITY OF KEY 5463 03:28:31,020 --> 03:28:34,057 EXPOSURES AND EVENTS. 5464 03:28:34,057 --> 03:28:43,266 FROM 2019-2023 HAD SEVEN SITES 5465 03:28:43,266 --> 03:28:44,167 COLLECT DATA, INCLUDING 6,000 5466 03:28:44,167 --> 03:28:46,336 DYADS, AND DATA ARE CURRENTLY 5467 03:28:46,336 --> 03:28:49,406 HOSTED ON RESEARCH DATA CENTER. 5468 03:28:49,406 --> 03:28:52,342 IN 2023 WE EXPANDED TO 11 5469 03:28:52,342 --> 03:28:53,877 CLINICAL SITES INCLUDING FIVE 5470 03:28:53,877 --> 03:28:57,147 PREVIOUS SITES, TO COLLECT DATA 5471 03:28:57,147 --> 03:29:03,520 ON MOUD AS EXPANDING TO POLY 5472 03:29:03,520 --> 03:29:04,587 SUBSTANCE USE, MEGALOVIRUS AND 5473 03:29:04,587 --> 03:29:05,155 STILL BIRTH. 5474 03:29:05,155 --> 03:29:07,857 NEXT I'LL TALK ABOUT OUR 5475 03:29:07,857 --> 03:29:10,860 PREVENTION, IDENTIFICATION, AND 5476 03:29:10,860 --> 03:29:12,362 INTERVENTION EFFORTS. 5477 03:29:12,362 --> 03:29:15,365 WE'LL START WITH NATIONAL 5478 03:29:15,365 --> 03:29:16,966 PARTNERSHIP WORK, PURPOSE OF THE 5479 03:29:16,966 --> 03:29:18,835 NETWORK WAS TO BUILD 5480 03:29:18,835 --> 03:29:20,370 COLLABORATIVE FRAMEWORK OF 5481 03:29:20,370 --> 03:29:21,805 NATIONAL PARTNER ORGANIZATIONS, 5482 03:29:21,805 --> 03:29:23,306 CONTRIBUTE TO REDUCING PRENATAL 5483 03:29:23,306 --> 03:29:25,275 ALCOHOL AND OTHER SUBSTANCE USE, 5484 03:29:25,275 --> 03:29:27,343 IMPROVING SUPPORT SERVICES AND 5485 03:29:27,343 --> 03:29:28,878 ACCESS TO CARE, IMPROVING 5486 03:29:28,878 --> 03:29:34,951 IDENTIFICATION AND HEALTH OF 5487 03:29:34,951 --> 03:29:36,252 CHILDREN, FAMILIES, WITH 5488 03:29:36,252 --> 03:29:36,586 FASDs. 5489 03:29:36,586 --> 03:29:41,958 PRIMARY FOCUS AREAS FOR THE 5490 03:29:41,958 --> 03:29:49,365 NETWORK INCLUDE EXPANSION, 5491 03:29:49,365 --> 03:29:52,101 COORDINATION AND DISSEMINATIONS, 5492 03:29:52,101 --> 03:29:55,705 IMPROVING EDUCATION, BUILDING 5493 03:29:55,705 --> 03:29:59,442 CAPACITY TO REACH AFFECTED 5494 03:29:59,442 --> 03:30:02,278 POPULATIONS AND INTEGRATING 5495 03:30:02,278 --> 03:30:03,513 LIVED EXPERIENCE. 5496 03:30:03,513 --> 03:30:04,814 HIGH LEVEL SUCCESSES 5497 03:30:04,814 --> 03:30:05,915 ACCOMPLISHED BY OUR NATIONAL 5498 03:30:05,915 --> 03:30:07,984 PARTNER NETWORK IN THE FIRST 5499 03:30:07,984 --> 03:30:10,487 YEAR AND A HALF INCLUDES THESE 5500 03:30:10,487 --> 03:30:12,021 THREE THEMES, PARTNER 5501 03:30:12,021 --> 03:30:13,490 COORDINATION AND COLLABORATION. 5502 03:30:13,490 --> 03:30:15,325 OUTREACH AND CAPACITY BUILDING 5503 03:30:15,325 --> 03:30:18,394 AMONG CLINICAL AND NON-CLINICAL 5504 03:30:18,394 --> 03:30:18,761 WORKFORCE. 5505 03:30:18,761 --> 03:30:20,330 INFORMATION SHARING AMONG PEOPLE 5506 03:30:20,330 --> 03:30:22,866 WITH LIVED EXPERIENCE OF FASDs 5507 03:30:22,866 --> 03:30:26,369 SUCH AS INDIVIDUALS AND 5508 03:30:26,369 --> 03:30:27,637 FAMILIES. 5509 03:30:27,637 --> 03:30:31,274 ACROSS ALL NINE RESENTS WE HAD 5510 03:30:31,274 --> 03:30:32,909 90 CHAMPIONS ADDED, INCLUDING 5511 03:30:32,909 --> 03:30:35,478 ALL SEPARATE CHAMPIONS NETWORK 5512 03:30:35,478 --> 03:30:39,949 TOGETHER, 56 PRODUCTS AND 5513 03:30:39,949 --> 03:30:41,251 EDUCATIONAL RESOURCES ABOUT 5514 03:30:41,251 --> 03:30:42,652 FASDs SHARED, PRODUCTS AND 5515 03:30:42,652 --> 03:30:44,087 RESOURCES INCLUDED BUT NOT 5516 03:30:44,087 --> 03:30:47,156 LIMITED TO WEB PAGES, JOURNAL 5517 03:30:47,156 --> 03:30:48,258 ARTICLES, TRAININGS, HEALTH 5518 03:30:48,258 --> 03:30:49,659 COMMUNICATION RESOURCES, 5519 03:30:49,659 --> 03:30:52,095 PROVIDER TOOL KITS, EDUCATIONAL 5520 03:30:52,095 --> 03:30:54,597 RESOURCES FOR PATIENTS, ALSO 5521 03:30:54,597 --> 03:30:55,365 OVER 50 EDUCATIONAL 5522 03:30:55,365 --> 03:30:57,333 OPPORTUNITIES EFFORTS. 5523 03:30:57,333 --> 03:30:58,768 SUCH AS WEBINARS, TRAININGS, 5524 03:30:58,768 --> 03:31:00,403 CONFERENCE PRESENTATIONS. 5525 03:31:00,403 --> 03:31:03,907 THESE EVENTS HAD OVER 8,000 5526 03:31:03,907 --> 03:31:05,441 ATTENDEES INCLUDING CLINICIANS, 5527 03:31:05,441 --> 03:31:09,479 NON-CLINICIANS, FASD SUBJECT 5528 03:31:09,479 --> 03:31:10,580 MATTER EXPERTS. 5529 03:31:10,580 --> 03:31:13,216 NEW PROJECT IS CREATING 5530 03:31:13,216 --> 03:31:14,284 PREGNANCY AND POSTPARTUM 5531 03:31:14,284 --> 03:31:15,518 CONTINUING EDUCATION CERTIFICATE 5532 03:31:15,518 --> 03:31:19,222 PROGRAM FOR PEER RECOVERY 5533 03:31:19,222 --> 03:31:19,489 WORKFORCE. 5534 03:31:19,489 --> 03:31:20,423 RESEARCH DEMONSTRATES WORKERS 5535 03:31:20,423 --> 03:31:22,191 HELP IMPROVE OUTCOMES FOR 5536 03:31:22,191 --> 03:31:26,262 PERSONS WITH SUBSTANCE USE 5537 03:31:26,262 --> 03:31:26,896 DISORDERS. 5538 03:31:26,896 --> 03:31:28,331 CURRENTLY PEER RECOVERY WORKERS 5539 03:31:28,331 --> 03:31:31,167 DO NOT RECEIVE SPECIFIC 5540 03:31:31,167 --> 03:31:32,035 STANDARDIZED TRAINING ABOUT 5541 03:31:32,035 --> 03:31:33,236 SUBSTANCE USE DISORDER IN 5542 03:31:33,236 --> 03:31:35,872 PREGNANCY AS PART OF STATE 5543 03:31:35,872 --> 03:31:40,610 ACCREDITORRED CERTIFICATIONS. 5544 03:31:40,610 --> 03:31:43,780 TO ADDRESS THIS DEVELOPING A 5545 03:31:43,780 --> 03:31:45,748 NATIONAL ACCREDITED 5546 03:31:45,748 --> 03:31:47,483 CERTIFICATIONS FOR PREGNANT AND 5547 03:31:47,483 --> 03:31:48,384 POSTPARTUM PEOPLE WITH SUBSTANCE 5548 03:31:48,384 --> 03:31:50,119 USE DISORDER. 5549 03:31:50,119 --> 03:31:51,220 WE'RE ALSO WRAPPING UP OUR 5550 03:31:51,220 --> 03:31:53,423 PROJECT THAT WE CALL PRENATAL 5551 03:31:53,423 --> 03:31:55,391 ALCOHOL AND OTHER DRUG EXPOSURES 5552 03:31:55,391 --> 03:31:57,694 PROJECT IN CHILD WELFARE, AN 5553 03:31:57,694 --> 03:31:58,895 INTERAGENCY AGREEMENT WITH 5554 03:31:58,895 --> 03:32:00,296 ADMINISTRATION FOR CHILDREN AND 5555 03:32:00,296 --> 03:32:02,966 FAMILIES, WITH GOAL OF IMPROVING 5556 03:32:02,966 --> 03:32:04,200 HEALTH, DEVELOPMENTAL OUTCOMES 5557 03:32:04,200 --> 03:32:05,902 AND FAMILY PRESERVATION OF 5558 03:32:05,902 --> 03:32:07,570 CHILDREN WITH PRENATAL ALCOHOL 5559 03:32:07,570 --> 03:32:10,840 AND/OR OTHER DRUG EXPOSURES IN 5560 03:32:10,840 --> 03:32:14,677 THE WELFARE SYSTEM. 5561 03:32:14,677 --> 03:32:15,778 WE'VE CONDUCTED STUDIES OF 5562 03:32:15,778 --> 03:32:19,382 PRACTICE AND NEED FOR CHILDREN, 5563 03:32:19,382 --> 03:32:22,752 FOR IDENTIFYING AND CARING FOR 5564 03:32:22,752 --> 03:32:23,319 CHILDREN WITH SUBSTANCE 5565 03:32:23,319 --> 03:32:26,155 EXPOSURES, AVAILABLE IN THE 5566 03:32:26,155 --> 03:32:27,991 REPORTS LISTED BELOW. 5567 03:32:27,991 --> 03:32:29,392 ONLINE TRAINING COURSES, MODULES 5568 03:32:29,392 --> 03:32:32,195 TO ACHIEVE RESOURCES THAT WILL 5569 03:32:32,195 --> 03:32:33,696 BE AVAILABLE ONLINE AND 5570 03:32:33,696 --> 03:32:35,765 ELECTRONIC TOOLS FOR MAPPING 5571 03:32:35,765 --> 03:32:41,804 SERVICE PATHWAYS FOR TRIBAL 5572 03:32:41,804 --> 03:32:42,238 COMMUNITIES. 5573 03:32:42,238 --> 03:32:43,773 COLLECTIVELY PROJECTS HAVE HAD 5574 03:32:43,773 --> 03:32:45,508 MANY ACCOMPLISHMENTS AND 5575 03:32:45,508 --> 03:32:50,013 CONTRIBUTE TO REDUCING PRENATAL 5576 03:32:50,013 --> 03:32:51,214 SUBSTANCE EXPOSURE, ENHANCING 5577 03:32:51,214 --> 03:32:52,515 SERVICES, UNDERSTANDING VARIOUS 5578 03:32:52,515 --> 03:32:53,783 PROCESSES AND BUILDING 5579 03:32:53,783 --> 03:32:55,051 FOUNDATION FOR SURVEILLANCE. 5580 03:32:55,051 --> 03:32:56,786 ULTIMATELY THESE EFFORTS ARE 5581 03:32:56,786 --> 03:32:57,987 SUPPORTING PREGNANT PEOPLE AND 5582 03:32:57,987 --> 03:33:02,025 CHILDREN AFFECTED BY ALCOHOL AND 5583 03:33:02,025 --> 03:33:03,359 OTHER SUBSTANCE USE. 5584 03:33:03,359 --> 03:33:05,528 FINALLY I WANT TO TALK ABOUT 5585 03:33:05,528 --> 03:33:09,599 SOME RECENT COMMUNICATION 5586 03:33:09,599 --> 03:33:09,999 RESEARCH EFFORTS. 5587 03:33:09,999 --> 03:33:13,536 A FEW YEARS BACK IN 2017 CDC 5588 03:33:13,536 --> 03:33:16,139 AWARDED COMMUNICATION CONTRACT 5589 03:33:16,139 --> 03:33:17,674 TO AMERICAN INSTITUTE FOR 5590 03:33:17,674 --> 03:33:19,442 RESEARCH, TO IMPROVE THE WAY 5591 03:33:19,442 --> 03:33:20,877 HEALTH CARE PROVIDERS DELIVER 5592 03:33:20,877 --> 03:33:23,079 MESSAGING ABOUT RISK OF ALCOHOL 5593 03:33:23,079 --> 03:33:25,014 ALLS DURING PREGNANCY AND ENGAGE 5594 03:33:25,014 --> 03:33:25,915 HEALTH CARE PROVIDERS IN 5595 03:33:25,915 --> 03:33:27,884 DELIVERY OF SCREENING AND BRIEF 5596 03:33:27,884 --> 03:33:30,953 INTERVENTION FOR THEIR PATIENTS, 5597 03:33:30,953 --> 03:33:33,156 PARTICULARLY PREGNANT OR CAN 5598 03:33:33,156 --> 03:33:34,323 BECOME PREGNANT INCLUDING ONLINE 5599 03:33:34,323 --> 03:33:37,193 SURVEY WITH HEALTH CARE 5600 03:33:37,193 --> 03:33:39,295 PROVIDERS, INTERVIEWS WITH 5601 03:33:39,295 --> 03:33:39,929 PROVIDERS AND IN-DEPTH 5602 03:33:39,929 --> 03:33:41,264 INTERVIEWS WITH WOMEN OF 5603 03:33:41,264 --> 03:33:42,065 REPRODUCTIVE AGE. 5604 03:33:42,065 --> 03:33:43,666 FINDINGS FROM THE SURVEY AND 5605 03:33:43,666 --> 03:33:45,535 INTERVIEWS WERE USED TO INFORM 5606 03:33:45,535 --> 03:33:52,642 DEVELOPMENT OF MESSAGE CONCEPTS 5607 03:33:52,642 --> 03:33:53,643 FOR PATIENT-PROVIDER 5608 03:33:53,643 --> 03:33:56,779 COMMUNICATION, IN 2020 AWARDING 5609 03:33:56,779 --> 03:33:58,648 A CONTRACT TO TEST CONCEPTS, 5610 03:33:58,648 --> 03:34:03,152 DEVELOP FINAL PRODUCTS FOR 5611 03:34:03,152 --> 03:34:03,786 PATIENT-PROVIDER COMMUNICATION 5612 03:34:03,786 --> 03:34:07,857 AND DEVELOP CDC GUIDE FOR 5613 03:34:07,857 --> 03:34:08,124 MESSAGING. 5614 03:34:08,124 --> 03:34:11,327 s 5615 03:34:11,327 --> 03:34:13,863 BASED ON FINDINGS WE ENDED UP 5616 03:34:13,863 --> 03:34:17,166 WITH A SUITE OF MATERIALS, THE 5617 03:34:17,166 --> 03:34:20,336 FIRST STEP WAS TEAM CREATED 5618 03:34:20,336 --> 03:34:21,571 CREATIVE BRIEFS AND STORY BOARDS 5619 03:34:21,571 --> 03:34:23,406 FOR EACH AUDIENCE AND PIECE TO 5620 03:34:23,406 --> 03:34:24,440 BE DEVELOPED. 5621 03:34:24,440 --> 03:34:30,313 AFTER INCORPORATING FEEDBACK 5622 03:34:30,313 --> 03:34:32,048 THE TEAM DEVELOPED STORY BOARDS. 5623 03:34:32,048 --> 03:34:34,584 FEATURED ON THE RIGHT IS FROM 5624 03:34:34,584 --> 03:34:35,651 ORIGINAL BRANDING PRESENTATION 5625 03:34:35,651 --> 03:34:39,489 FROM DESIGN TEAM THAT ORAU USED, 5626 03:34:39,489 --> 03:34:43,226 ROBIN EASTER DESIGN OUT OF 5627 03:34:43,226 --> 03:34:44,360 KNOXVILLE, TENNESSEE. 5628 03:34:44,360 --> 03:34:47,063 LAST SEPTEMBER WE SHARED THE 5629 03:34:47,063 --> 03:34:48,798 FINAL MATERIALS VIA CDC WEB 5630 03:34:48,798 --> 03:34:51,434 FEATURE IN TIME FOR FASD 5631 03:34:51,434 --> 03:34:52,969 AWARENESS MONTH. 5632 03:34:52,969 --> 03:34:54,270 TO ACCESS THE MATERIALS GO TO 5633 03:34:54,270 --> 03:34:58,341 THE LINK HERE, YOU CAN GO TO OUR 5634 03:34:58,341 --> 03:35:02,378 HOME PAGE AT CDC.GOV/FASD, FIND 5635 03:35:02,378 --> 03:35:04,680 A LINK TO THEM AT THE TOP OF THE 5636 03:35:04,680 --> 03:35:05,014 PAGE. 5637 03:35:05,014 --> 03:35:06,549 THIS IS JUST A SCREEN SHOT OF 5638 03:35:06,549 --> 03:35:09,619 THE TOP OF THE PAGE BUT AS YOU 5639 03:35:09,619 --> 03:35:11,821 SCROLL DOWN THERE ARE LINKS TO 5640 03:35:11,821 --> 03:35:13,689 MATERIALS INCLUDING VIDEOS 5641 03:35:13,689 --> 03:35:16,325 HOUSED ON CDC'S YouTube 5642 03:35:16,325 --> 03:35:16,659 CHANNEL. 5643 03:35:16,659 --> 03:35:19,428 I WANTED TO ALERT YOU TO A NEW 5644 03:35:19,428 --> 03:35:21,030 WEBSITE LAUNCHING ON MAY 15. 5645 03:35:21,030 --> 03:35:23,232 THIS IS A CDC-WIDE EFFORT, EVERY 5646 03:35:23,232 --> 03:35:26,068 TOPIC AND EVERY WEB PAGE ACROSS 5647 03:35:26,068 --> 03:35:28,271 THE AGENCY HAS BEEN-REVAMPED TO 5648 03:35:28,271 --> 03:35:29,138 MAKE INFORMATION MORE 5649 03:35:29,138 --> 03:35:30,673 STREAMLINED, EASIER FOR WEB 5650 03:35:30,673 --> 03:35:32,642 USERS TO FIND. 5651 03:35:32,642 --> 03:35:35,378 THE PROCESS OF REDESIGNING 5652 03:35:35,378 --> 03:35:36,813 FASD-RELATED CONSENT, WE SPLIT 5653 03:35:36,813 --> 03:35:39,749 INTO TWO SITES SO THERE'S ONE 5654 03:35:39,749 --> 03:35:42,251 SITE ON FASD, SEPARATE SITE ON 5655 03:35:42,251 --> 03:35:44,787 ALCOHOL USE AND PREGNANCY, PAGES 5656 03:35:44,787 --> 03:35:46,522 ARE CROSS-LINKED, TO EACH OTHER. 5657 03:35:46,522 --> 03:35:49,258 WHAT YOU SEE HERE ARE URLs FOR 5658 03:35:49,258 --> 03:35:53,529 BOTH SITES, PREES -- PLEASE 5659 03:35:53,529 --> 03:35:55,064 NOTE IT IS SCHEDULED TO BE 5660 03:35:55,064 --> 03:35:56,232 LAUNCHED FOR MAY 15, THEY DON'T 5661 03:35:56,232 --> 03:35:57,466 WORK YET. 5662 03:35:57,466 --> 03:36:00,203 IF YOU DO GO TO THE OLD URL IT 5663 03:36:00,203 --> 03:36:04,373 WILL REDIRECT YOU TO OUR NEW 5664 03:36:04,373 --> 03:36:04,941 SITES. 5665 03:36:04,941 --> 03:36:08,344 THANK YOU FOR YOUR TIME. 5666 03:36:08,344 --> 03:36:12,915 5667 03:36:12,915 --> 03:36:13,049 5668 03:36:13,049 --> 03:36:16,986 >> WE'LL GO WITH ANOTHER 5669 03:36:16,986 --> 03:36:18,287 PRESENTATION, LAST PRESENTATION 5670 03:36:18,287 --> 03:36:19,722 PLEASE HAVE IT ON VIDEO. 5671 03:36:19,722 --> 03:36:23,192 WE ASK OUR I.T. SUPPORT TO GIVE 5672 03:36:23,192 --> 03:36:25,962 SECOND PRESENTATION ON VIDEO. 5673 03:36:25,962 --> 03:36:27,063 SECOND PRESENTATION RECORDED 5674 03:36:27,063 --> 03:36:37,607 WILL BE INDIAN HEALTH SERVICES. 5675 03:36:41,377 --> 03:36:42,278 AND AFTER PRESENTATION WE'LL 5676 03:36:42,278 --> 03:36:42,912 HAVE DISCUSSION. 5677 03:36:42,912 --> 03:36:44,380 >> THANK YOU FOR THE OPPORTUNITY 5678 03:36:44,380 --> 03:36:46,349 TO PROVIDE UPDATES ON BEHALF OF 5679 03:36:46,349 --> 03:36:51,587 THE INDIAN HEALTH SERVICE, IHS. 5680 03:36:51,587 --> 03:36:57,827 I'M TINA PATTARA-LAU, OB/GYN 5681 03:36:57,827 --> 03:36:59,629 PROVIDING CARE IN PHOENIX AREA. 5682 03:36:59,629 --> 03:37:01,230 INDIAN HEALTH SERVICE IS FEDERAL 5683 03:37:01,230 --> 03:37:03,633 AGENCY THAT PROVIDES HEALTH CARE 5684 03:37:03,633 --> 03:37:08,838 SERVICES TO 2.8 MILLION AMERICAN 5685 03:37:08,838 --> 03:37:11,807 INDIAN AND ALASKA NATIVES FROM 5686 03:37:11,807 --> 03:37:16,946 274 STRIKES, TO RAISE PHYSICAL, 5687 03:37:16,946 --> 03:37:18,281 MENTAL, EMOTIONAL AND SPIRITUAL 5688 03:37:18,281 --> 03:37:18,514 HEALTH. 5689 03:37:18,514 --> 03:37:21,450 THE VISION OF THE PROGRAM IS 5690 03:37:21,450 --> 03:37:22,451 HEALTHY PREGNANCIES, HEALTHY 5691 03:37:22,451 --> 03:37:24,120 BABIES, HEALTHY COMMUNITIES. 5692 03:37:24,120 --> 03:37:26,389 PREGNANT PEOPLE ARE HEALTHY AND 5693 03:37:26,389 --> 03:37:27,957 WELL CARED FOR, NEWBORNS, 5694 03:37:27,957 --> 03:37:29,358 CHILDREN AND COMMUNITIES THRIVE. 5695 03:37:29,358 --> 03:37:30,326 HISTORY AND LIVED EXPERIENCE 5696 03:37:30,326 --> 03:37:32,428 INFORM OUR WORK. 5697 03:37:32,428 --> 03:37:35,264 WE KNOW EFFECTS OF 2*EUS 5698 03:37:35,264 --> 03:37:36,799 HISTORICAL TRAUMA LIST 5699 03:37:36,799 --> 03:37:41,938 GENERATIONS, WITH ADVERSE 5700 03:37:41,938 --> 03:37:42,838 CHILDHOOD EXPERIENCES AND SOCIAL 5701 03:37:42,838 --> 03:37:45,341 DETERMINANTS OF HEALTH CAN 5702 03:37:45,341 --> 03:37:45,875 DISPROPORTIONATELY AFFECT 5703 03:37:45,875 --> 03:37:52,848 AMERICAN INDIAN AND ALASKA 5704 03:37:52,848 --> 03:37:54,283 NATIVE PERSONS, THIS HISTORY 5705 03:37:54,283 --> 03:37:55,384 CONTRIBUTES TO MISTRUST AND 5706 03:37:55,384 --> 03:37:57,820 AVOIDANCE OF SEEKING CARE WITH 5707 03:37:57,820 --> 03:38:00,656 INSTITUTIONALIZED HEALTH CARE 5708 03:38:00,656 --> 03:38:01,090 SYSTEMS. 5709 03:38:01,090 --> 03:38:02,091 IHS ADAPTED APPROACHES TO 5710 03:38:02,091 --> 03:38:04,593 INCREASE ACCESS TO CARE AND 5711 03:38:04,593 --> 03:38:06,595 SUPPORT THE MATERNAL INFANT DYAD 5712 03:38:06,595 --> 03:38:07,563 BEFORE, DURING, AFTER PREGNANCY. 5713 03:38:07,563 --> 03:38:11,734 OUR GOAL TO BRIDGE THE GAP 5714 03:38:11,734 --> 03:38:12,902 BRINGING NATIONAL RESOURCES TO 5715 03:38:12,902 --> 03:38:14,036 THE BEDSIDE AND COMMUNITIES, 5716 03:38:14,036 --> 03:38:17,206 LEADING WITH CULTURAL SAFETY AND 5717 03:38:17,206 --> 03:38:24,113 HUE ANYTIME MILTED -- HUMILITY, 5718 03:38:24,113 --> 03:38:34,590 INTENTIONAL ABOUT LIFTING UP 5719 03:38:35,858 --> 03:38:38,561 INDIGENOUS WOKERS, PROVIDING 5720 03:38:38,561 --> 03:38:46,769 SITES IN MATERNITY CARE, THE 5721 03:38:46,769 --> 03:38:51,674 PROGRAM HAS TWO PARTS. 5722 03:38:51,674 --> 03:38:52,942 MANUAL CREATED BY 5723 03:38:52,942 --> 03:38:55,511 MULTI-DISCIPLINARY GROUP 5724 03:38:55,511 --> 03:39:00,549 PROVIDING CHECK LISTS, 5725 03:39:00,549 --> 03:39:01,784 PROTOCOLS, CURRICULUM, FOR 5726 03:39:01,784 --> 03:39:04,320 SCREENING IN PREGNANT PERSONS. 5727 03:39:04,320 --> 03:39:06,889 AFTER REVIEW BY 25 IHS SITES, 5728 03:39:06,889 --> 03:39:08,224 MANUAL IS CURRENTLY UNDERGOING 5729 03:39:08,224 --> 03:39:09,392 INTERNAL REVIEW, WE HOPE TO 5730 03:39:09,392 --> 03:39:15,531 SHARE THIS WITH OUR PARTNERS. 5731 03:39:15,531 --> 03:39:17,066 FIVE SITES AND 225 STAFF 5732 03:39:17,066 --> 03:39:20,236 PARTICIPATED IN RANGE AND WE 5733 03:39:20,236 --> 03:39:27,676 PROVIDE TECHNICAL ASSISTANCE TO 5734 03:39:27,676 --> 03:39:33,382 SITES IN BILLINGS, BIMIJI, AND 5735 03:39:33,382 --> 03:39:33,649 PHOENIX. 5736 03:39:33,649 --> 03:39:36,419 PARTNERED WITH NORTHWEST 5737 03:39:36,419 --> 03:39:39,388 PORTLAND AREA TO LAUNCH A 5738 03:39:39,388 --> 03:39:40,322 SERIES, TOPICS INCLUDING 5739 03:39:40,322 --> 03:39:41,257 SCREENING AND INTERVENTION FOR 5740 03:39:41,257 --> 03:39:42,892 ALCOHOL AND SUBSTANCE USE IN 5741 03:39:42,892 --> 03:39:46,062 PREGNANCY, STRATEGIES FOR HARM 5742 03:39:46,062 --> 03:39:47,196 REDUCTION, HOPE COMMITTEE 5743 03:39:47,196 --> 03:39:52,401 UPDATED FAMILY CARE PLANS AND 5744 03:39:52,401 --> 03:39:56,372 RESOURCES, UCSF SUBSTANCE USE 5745 03:39:56,372 --> 03:39:58,541 LINE AND HRSA MATERNAL HEALTH 5746 03:39:58,541 --> 03:40:08,951 OUTLINE, FEATURING WORK 5747 03:40:09,752 --> 03:40:11,020 TREATMENT OFFICERS THAT SUPPORT 5748 03:40:11,020 --> 03:40:13,022 PREGNANT PEOPLE AND FAMILIES IN 5749 03:40:13,022 --> 03:40:19,095 PHOENIX, ARIZONA. 5750 03:40:19,095 --> 03:40:20,196 ATTENDED BY 1400 PARTICIPANTS 5751 03:40:20,196 --> 03:40:23,232 AND TRIBAL AND URBAN SITES, 5752 03:40:23,232 --> 03:40:25,201 INCLUDED COLLEAGUES IN 5753 03:40:25,201 --> 03:40:26,769 BEHAVIORAL HEALTH, COUNSELORS, 5754 03:40:26,769 --> 03:40:28,504 SOCIAL WORKERS, COMMUNITY 5755 03:40:28,504 --> 03:40:28,938 LEADERS. 5756 03:40:28,938 --> 03:40:29,805 TO ADDRESS SOCIAL DETERMINANTS 5757 03:40:29,805 --> 03:40:31,674 OF HEALTH INCREASED ACCESS TO 5758 03:40:31,674 --> 03:40:35,778 CARE IN THE COMMUNITY IHS WILL 5759 03:40:35,778 --> 03:40:39,882 PILOT MCC PROGRAM, FUNDING SITES 5760 03:40:39,882 --> 03:40:42,952 SPECIFIC MCCs TO PROVIDE 5761 03:40:42,952 --> 03:40:44,153 TELEHEALTH SUPPORT, PARTNERSHIP 5762 03:40:44,153 --> 03:40:45,454 WITH TRUSTED LEADERS AND TERT 5763 03:40:45,454 --> 03:40:47,890 CARRY CARE CENTERS TO EXTENDS 5764 03:40:47,890 --> 03:40:50,926 CARE BEYOND THE CLINIC, 5765 03:40:50,926 --> 03:40:53,896 TRANSITION IN THE CRITICAL 5766 03:40:53,896 --> 03:40:56,599 POSTPARTUM PERIOD TO INCREASE 5767 03:40:56,599 --> 03:40:57,399 ACCESS TO CARE, INCLUDING 5768 03:40:57,399 --> 03:40:58,400 REFERRAL TO TREATMENT FOR 5769 03:40:58,400 --> 03:41:07,143 ALCOHOL AND SUBSTANCE USE IN 5770 03:41:07,143 --> 03:41:09,345 PREGNANCY FUNDING SIZE ACROSS 5771 03:41:09,345 --> 03:41:10,079 SIX AREAS. 5772 03:41:10,079 --> 03:41:11,714 THANK YOU FOR THE OPPORTUNITY TO 5773 03:41:11,714 --> 03:41:13,616 PROVIDE UPDATES TODAY AND FOR 5774 03:41:13,616 --> 03:41:16,118 CONTINUING TO ADVOCATE FOR 5775 03:41:16,118 --> 03:41:17,219 HEALTH AND WELL-BEING OF 5776 03:41:17,219 --> 03:41:17,953 INDIGENOUS COMMUNITIES. 5777 03:41:17,953 --> 03:41:19,421 PLEASE REACH OUT IF YOU HAVE 5778 03:41:19,421 --> 03:41:19,688 QUESTIONS. 5779 03:41:19,688 --> 03:41:24,527 THANKS. 5780 03:41:24,527 --> 03:41:24,960 >> ALL RIGHT. 5781 03:41:24,960 --> 03:41:27,062 THANK YOU VERY MUCH FOR 5782 03:41:27,062 --> 03:41:27,563 PRESENTATIONS. 5783 03:41:27,563 --> 03:41:31,867 NOW WE HAVE TIME FOR DISCUSSION. 5784 03:41:31,867 --> 03:41:36,038 WE HAVE THREE PRESENTATIONS FROM 5785 03:41:36,038 --> 03:41:41,777 SAMHSA, CDC, AND INDIAN HEALTH 5786 03:41:41,777 --> 03:41:44,446 SERVICES. 5787 03:41:44,446 --> 03:41:47,183 5788 03:41:47,183 --> 03:41:50,119 WELCOME, QUESTIONS AN COMMENTS. 5789 03:41:50,119 --> 03:41:52,221 WE HAVE AN ONLINE QUESTION FOR 5790 03:41:52,221 --> 03:41:57,059 CDC IF SHIN CAN HEAR ME. 5791 03:41:57,059 --> 03:41:59,128 >> YES, I HEAR YOU. 5792 03:41:59,128 --> 03:42:00,763 >> SO, THE QUESTION, IN 5793 03:42:00,763 --> 03:42:03,933 REPORTING ON TRAINING AND 5794 03:42:03,933 --> 03:42:06,569 INCREASED INTENTION TO CHANGE 5795 03:42:06,569 --> 03:42:08,103 PRACTICE, HAS IT BEEN POSSIBLE 5796 03:42:08,103 --> 03:42:10,272 TO IDENTIFY WHICH PRACTICES, 5797 03:42:10,272 --> 03:42:13,776 POLICIES AND OUTCOMES HAVE 5798 03:42:13,776 --> 03:42:14,543 ACTUALLY IMPROVED? 5799 03:42:14,543 --> 03:42:18,614 HOW FORMAL IS THE EFFORT TO MOVE 5800 03:42:18,614 --> 03:42:20,349 PILOT PROJECTS TO SCALE? 5801 03:42:20,349 --> 03:42:23,519 A COMMENT FROM CINDY GARDNER. 5802 03:42:23,519 --> 03:42:29,858 5803 03:42:29,858 --> 03:42:33,329 >> SO, I'M NOT SURE WHICH PILOT 5804 03:42:33,329 --> 03:42:35,231 PROJECT THAT SHE'S REFERRING TO. 5805 03:42:35,231 --> 03:42:38,834 I THINK IN TERMS OF TRYING TO 5806 03:42:38,834 --> 03:42:42,104 FIGURE OUT IMPACT OF OUR 5807 03:42:42,104 --> 03:42:46,275 PROGRAM, IT'S ALWAYS A CHALLENGE 5808 03:42:46,275 --> 03:42:49,011 GIVEN THAT OUR DATA, WE HAVE 5809 03:42:49,011 --> 03:42:52,848 DATA ON ALCOHOL USE AND THEN WE 5810 03:42:52,848 --> 03:42:54,717 HAVE, YOU KNOW -- WE'RE STILL 5811 03:42:54,717 --> 03:42:57,786 TRYING TO GET SOME DATA ON FASD, 5812 03:42:57,786 --> 03:42:59,088 SO WE DON'T HAVE A LOT OF DATA 5813 03:42:59,088 --> 03:43:03,892 THAT KIND OF, YOU KNOW, REALLY 5814 03:43:03,892 --> 03:43:06,528 GETS AT LIKE HOW THE TRENDS OF 5815 03:43:06,528 --> 03:43:09,498 ALCOHOL USE IN PREGNANCY IS 5816 03:43:09,498 --> 03:43:10,699 DIRECTLY AFFECTING FASD 5817 03:43:10,699 --> 03:43:14,737 ESTIMATES, GIVEN THAT WE DON'T 5818 03:43:14,737 --> 03:43:18,040 CURRENTLY HAVE, YOU KNOW, A TRUE 5819 03:43:18,040 --> 03:43:20,909 WAY TO ESTIMATE FASDs, BUT I 5820 03:43:20,909 --> 03:43:23,212 THINK A LOT OF THE EFFORTS ARE, 5821 03:43:23,212 --> 03:43:24,613 YOU KNOW, VERY MUCH TRYING TO 5822 03:43:24,613 --> 03:43:26,682 TARGET AND TRYING TO THINK 5823 03:43:26,682 --> 03:43:31,620 ABOUT, YOU KNOW, WAYS TO ADDRESS 5824 03:43:31,620 --> 03:43:34,556 ALCOHOL USE IN PREGNANCY AND 5825 03:43:34,556 --> 03:43:36,625 TRYING TO THINK ABOUT ESTIMATES 5826 03:43:36,625 --> 03:43:41,597 AROUND ALCOHOL USE IN PREGNANCY, 5827 03:43:41,597 --> 03:43:43,766 HOPING THAT IT WILL HAVE -- 5828 03:43:43,766 --> 03:43:46,068 TRYING TO ADDRESS THINGS 5829 03:43:46,068 --> 03:43:48,570 UPSTREAM SO THAT IT WOULD IMPACT 5830 03:43:48,570 --> 03:43:50,272 THE WORK DOWNSTREAM. 5831 03:43:50,272 --> 03:43:54,076 I KNOW THAT'S NOT ALWAYS THE, 5832 03:43:54,076 --> 03:43:57,146 YOU KNOW, ANSWER THAT FOLKS ARE 5833 03:43:57,146 --> 03:43:58,580 WANTING BUT I THINK -- THAT IS 5834 03:43:58,580 --> 03:44:00,883 WHY WE'RE TRYING TO EXPLORE HOW 5835 03:44:00,883 --> 03:44:02,518 WE CAN BETTER ESTIMATE FASDs 5836 03:44:02,518 --> 03:44:06,021 TO TRY TO SEE HOW OUR WORK CAN 5837 03:44:06,021 --> 03:44:09,391 IMPACT -- HOW OUR WORK IS 5838 03:44:09,391 --> 03:44:10,693 POSSIBLY IMPACTING FASD 5839 03:44:10,693 --> 03:44:12,361 ESTIMATES, BUT TRULY IT IS A 5840 03:44:12,361 --> 03:44:14,963 CHALLENGE. 5841 03:44:14,963 --> 03:44:25,507 WE'RE LEARNING A LOT ABOUT HOW 5842 03:44:30,779 --> 03:44:32,681 FASDs ARE DIAGNOSED TO FIGURE 5843 03:44:32,681 --> 03:44:35,517 OUT PLACES WHERE WE CAN MAKE 5844 03:44:35,517 --> 03:44:39,922 THOSE IMPACTS, AND IN TERMS OF 5845 03:44:39,922 --> 03:44:41,657 TRYING TO MOVE EFFORTS TO SCALE 5846 03:44:41,657 --> 03:44:44,927 I THINK PART OF IT IS FUNDING, 5847 03:44:44,927 --> 03:44:48,530 PART IS JUST REALLY BEING ABLE 5848 03:44:48,530 --> 03:44:50,099 TO DEMONSTRATE THE WORK THAT 5849 03:44:50,099 --> 03:44:54,269 WE'RE TRYING TO DO TRULY WORKS, 5850 03:44:54,269 --> 03:44:56,972 AND WE DON'T WANT TO SCALE 5851 03:44:56,972 --> 03:44:59,708 SOMETHING UP THAT ISN'T WORKING 5852 03:44:59,708 --> 03:45:03,545 AND ALSO JUST WORKING WITH OUR 5853 03:45:03,545 --> 03:45:07,850 PARTNERS TO REALLY KIND OF 5854 03:45:07,850 --> 03:45:09,885 ADDRESS AND LEARN WHAT IS 5855 03:45:09,885 --> 03:45:11,286 EFFECTIVE AND IMPACTFUL. 5856 03:45:11,286 --> 03:45:13,689 I THINK THIS SPACE IS CONSTANTLY 5857 03:45:13,689 --> 03:45:17,426 CHANGING, AND SO I THINK WE'RE 5858 03:45:17,426 --> 03:45:19,495 ALSO JUST TRYING TO KIND OF, YOU 5859 03:45:19,495 --> 03:45:24,233 KNOW, BE COGNIZANT OF CHANGES 5860 03:45:24,233 --> 03:45:26,502 HAPPENING, AND SO, YES, I HOPE I 5861 03:45:26,502 --> 03:45:28,904 ANSWERED THE QUESTION BUT I WILL 5862 03:45:28,904 --> 03:45:32,107 TURN TO SEE IF MARY-KATE OR 5863 03:45:32,107 --> 03:45:37,346 ELIZABETH HAVE ANYTHING TO ADD 5864 03:45:37,346 --> 03:45:38,013 TO THAT. 5865 03:45:38,013 --> 03:45:39,415 >> PART OF THE QUESTION WAS 5866 03:45:39,415 --> 03:45:41,817 MAYBE LIKE HOW DO WE KNOW IF 5867 03:45:41,817 --> 03:45:43,685 WE'VE MADE A DIFFERENCE WITH 5868 03:45:43,685 --> 03:45:46,555 SOME HEALTH CARE DISCIPLINES 5869 03:45:46,555 --> 03:45:47,990 MORE THAN OTHERS. 5870 03:45:47,990 --> 03:45:50,692 OVER THE YEARS WE'VE KIND OF 5871 03:45:50,692 --> 03:45:53,328 MOVED AWAY FROM JUST A TRAINING 5872 03:45:53,328 --> 03:45:55,964 APPROACH BECAUSE IT WAS ACTUALLY 5873 03:45:55,964 --> 03:45:59,368 VERY EASY TO SHOW THAT THERE 5874 03:45:59,368 --> 03:46:01,103 WERE INCREASES IN KNOWLEDGE AND 5875 03:46:01,103 --> 03:46:02,271 INTENT TO CHANGE PRACTICE AND 5876 03:46:02,271 --> 03:46:03,739 THAT SORT OF THING ACROSS ALL OF 5877 03:46:03,739 --> 03:46:04,940 THE DISCIPLINES THAT WE'VE BEEN 5878 03:46:04,940 --> 03:46:07,242 WORKING WITH OVER THE YEARS BUT 5879 03:46:07,242 --> 03:46:10,179 WE RECOGNIZE THAT'S NOT ENOUGH 5880 03:46:10,179 --> 03:46:11,513 TO ACTUALLY CREATE PRACTICE 5881 03:46:11,513 --> 03:46:13,949 CHANGE AND WE WERE TRAINING UP 5882 03:46:13,949 --> 03:46:16,452 TO 500 HEALTH CARE PROFESSIONALS 5883 03:46:16,452 --> 03:46:21,957 PER MONTH BACK WHEN WE HAD 5884 03:46:21,957 --> 03:46:23,792 REGIONAL TRAINING CENTERS BUT 5885 03:46:23,792 --> 03:46:25,761 SOMEONE CAN'T IMPLEMENT THAT IN 5886 03:46:25,761 --> 03:46:26,962 THEIR SYSTEM OF CARE BECAUSE ONE 5887 03:46:26,962 --> 03:46:28,397 PERSON WANTS. 5888 03:46:28,397 --> 03:46:32,201 TO THAT'S WHY WE LATER MOVED TO 5889 03:46:32,201 --> 03:46:34,837 IMPLEMENT IN LARGE HEALTH CARE 5890 03:46:34,837 --> 03:46:37,706 SYSTEMS WITH SCREENING AND BRIEF 5891 03:46:37,706 --> 03:46:39,441 INTERVENTION AND REFERRAL TO 5892 03:46:39,441 --> 03:46:39,708 TREATMENT. 5893 03:46:39,708 --> 03:46:43,178 SO, ALL THAT TO SAY LIKE SHIN 5894 03:46:43,178 --> 03:46:45,347 SAID WE'RE STILL WORKING HARD TO 5895 03:46:45,347 --> 03:46:47,115 TARGET THESE HEALTH CARE 5896 03:46:47,115 --> 03:46:48,650 DISCIPLINES BUT WE KNOW TRAINING 5897 03:46:48,650 --> 03:46:51,720 IS NOT ENOUGH SO THAT'S ALSO WHY 5898 03:46:51,720 --> 03:46:54,122 WE HAVE OUR CHAMPIONS NETWORKS, 5899 03:46:54,122 --> 03:46:57,192 THAT SHIN TALKED ABOUT IN HER 5900 03:46:57,192 --> 03:46:58,060 PRESENTATION. 5901 03:46:58,060 --> 03:47:00,429 AND DIFFERENT APPROACHES TO TRY 5902 03:47:00,429 --> 03:47:01,463 AND FOSTER COLLABORATION ACROSS 5903 03:47:01,463 --> 03:47:03,866 THE GROUPS BECAUSE, AGAIN, IT'S 5904 03:47:03,866 --> 03:47:06,168 NOT ENOUGH FOR JUST THE OB/GYN 5905 03:47:06,168 --> 03:47:10,772 TO MAYBE KNOW THAT THERE WAS A 5906 03:47:10,772 --> 03:47:12,608 HISTORY OF EXPOSURE, THEN THE 5907 03:47:12,608 --> 03:47:13,609 PEDIATRICIAN DOESN'T KNOW THAT, 5908 03:47:13,609 --> 03:47:14,810 AND ON AND ON. 5909 03:47:14,810 --> 03:47:16,678 SO, AGAIN, I'M NOT SURE IF THAT 5910 03:47:16,678 --> 03:47:19,948 ANSWERS THE QUESTION. 5911 03:47:19,948 --> 03:47:22,684 >> THANK YOU. 5912 03:47:22,684 --> 03:47:24,653 I THINK IT'S CRITICALLY 5913 03:47:24,653 --> 03:47:27,723 IMPORTANT WE ALL AT THE SAME 5914 03:47:27,723 --> 03:47:30,459 TIME DISCUSS, I'M THINKING ABOUT 5915 03:47:30,459 --> 03:47:34,296 EFFORTS THAT HRSA CURRENT IS 5916 03:47:34,296 --> 03:47:39,301 DOING WITH DIFFERENT PHYSICIANS, 5917 03:47:39,301 --> 03:47:40,335 AND EXPERIENCES THAT ELIZABETH 5918 03:47:40,335 --> 03:47:41,637 SAYING ABOUT TRAINING NOT BEING 5919 03:47:41,637 --> 03:47:41,870 ENOUGH. 5920 03:47:41,870 --> 03:47:43,372 I HAVE MY QUESTION NOW. 5921 03:47:43,372 --> 03:47:45,040 I DON'T SEE RAISED HAND SO I CAN 5922 03:47:45,040 --> 03:47:47,643 ASK WHAT DO YOU THINK WAS YOUR 5923 03:47:47,643 --> 03:47:52,147 EXPERIENCE, TRAINING IS NOT 5924 03:47:52,147 --> 03:47:54,116 ENOUGH, WE HAVE -- WE HEAR ABOUT 5925 03:47:54,116 --> 03:47:55,317 CHANGE FOR 20, 30 YEARS 5926 03:47:55,317 --> 03:47:57,786 WHAT IS, FROM YOUR EXPERIENCES, 5927 03:47:57,786 --> 03:48:00,689 WHAT DO YOU THINK WE'RE MISSING 5928 03:48:00,689 --> 03:48:02,958 HERE? 5929 03:48:02,958 --> 03:48:04,793 5930 03:48:04,793 --> 03:48:05,360 WHAT ELSE? 5931 03:48:05,360 --> 03:48:06,295 TRAINING NOT ENOUGH. 5932 03:48:06,295 --> 03:48:11,867 WHAT ELSE? 5933 03:48:11,867 --> 03:48:15,904 I SEE JAN'S HAND. 5934 03:48:15,904 --> 03:48:17,372 JAN, GO AHEAD. 5935 03:48:17,372 --> 03:48:18,206 >> THANK YOU. 5936 03:48:18,206 --> 03:48:19,808 I'M THINKING BACK TO EVERYTHING 5937 03:48:19,808 --> 03:48:22,044 I'VE BEEN HEARING, A COUPLE 5938 03:48:22,044 --> 03:48:24,313 THINGS COME TO MIND. 5939 03:48:24,313 --> 03:48:27,816 ONE OF THE PRESENTATIONS, MAYBE 5940 03:48:27,816 --> 03:48:31,553 SHIN JUST MENTIONED SOME -- 5941 03:48:31,553 --> 03:48:34,656 MENTORING -- I'LL USE THE WORD 5942 03:48:34,656 --> 03:48:39,328 MENTORING MODEL, HAS ANYBODY 5943 03:48:39,328 --> 03:48:41,196 CONSIDERED DEVELOPING A PEER 5944 03:48:41,196 --> 03:48:42,397 MENTORING MODEL FOR ADULT WAS 5945 03:48:42,397 --> 03:48:43,932 FASD, BECAUSE I THINK IT'S A 5946 03:48:43,932 --> 03:48:45,033 CRITICAL ISSUE, LOOKING AT 5947 03:48:45,033 --> 03:48:47,669 THINGS THAT EVERYTHING IS 5948 03:48:47,669 --> 03:48:50,706 FOCUSED ON YOUNG CHILDREN, YOUNG 5949 03:48:50,706 --> 03:48:52,708 FAMILIES, BUT I THINK A KEY 5950 03:48:52,708 --> 03:48:53,809 MISSING POINT IS THAT YOUNG 5951 03:48:53,809 --> 03:48:55,677 FAMILIES BECOME FAMILIES WITH 5952 03:48:55,677 --> 03:48:56,645 OLDER CHILDREN, BECOME FAMILIES 5953 03:48:56,645 --> 03:48:59,615 WITH TEENAGERS, BECOME FAMILIES 5954 03:48:59,615 --> 03:48:59,915 WITH ADULTS. 5955 03:48:59,915 --> 03:49:01,783 AND THEY ARE STILL FAMILIES WITH 5956 03:49:01,783 --> 03:49:03,986 CHILDREN OF ANY AGE WITH FASD 5957 03:49:03,986 --> 03:49:07,923 AND THE THINGS THEY NEED AS THEY 5958 03:49:07,923 --> 03:49:09,658 GET OLDER CHANGE AND ARE 5959 03:49:09,658 --> 03:49:12,728 CRITICAL TO DEVELOP. 5960 03:49:12,728 --> 03:49:15,364 AND IT'S -- I DON'T MEAN THIS 5961 03:49:15,364 --> 03:49:16,665 DISRESPECTFULLY BUT IT'S SHORT 5962 03:49:16,665 --> 03:49:18,767 SIGHTED NOT TO CONSIDER THAT 5963 03:49:18,767 --> 03:49:19,968 DISABILITIES PERMANENT SO THINGS 5964 03:49:19,968 --> 03:49:22,704 THAT NEED TO CONTINUE TO DEVELOP 5965 03:49:22,704 --> 03:49:24,239 ACROSS TIME AND SPACE, THAT'S 5966 03:49:24,239 --> 03:49:25,207 ONE THING. 5967 03:49:25,207 --> 03:49:28,410 ANOTHER THING WHEN YOU LOOK 5968 03:49:28,410 --> 03:49:30,412 ABOUT TRAINING, ET CETERA, IS IN 5969 03:49:30,412 --> 03:49:32,247 THE PROVINCE OF BRITISH COLUMBIA 5970 03:49:32,247 --> 03:49:34,349 IN CANADA THE UNIVERSITY HAS 5971 03:49:34,349 --> 03:49:38,954 JUST -- UNIVERSITY OF BRITISH 5972 03:49:38,954 --> 03:49:40,589 COLUMBIA WORKED WITH GROUP OF 5973 03:49:40,589 --> 03:49:41,757 DOCTORS ASSOCIATION FOR THE 5974 03:49:41,757 --> 03:49:44,393 PROVINCE, AND THEN WITH EXPERT 5975 03:49:44,393 --> 03:49:47,562 GROUP OF EXPERTS ON FASD 5976 03:49:47,562 --> 03:49:48,864 INCLUDING ADULTS WITH FASD, 5977 03:49:48,864 --> 03:49:53,035 BIRTH MOTHERS WHO HAVE CHILDREN 5978 03:49:53,035 --> 03:49:54,269 WITH FASD, AND ADOPTIVE PARENTS 5979 03:49:54,269 --> 03:49:56,672 TO DEVELOP A CURRICULUM FOR THE 5980 03:49:56,672 --> 03:49:58,206 FAMILY PROVIDER, FAMILY SERVICE 5981 03:49:58,206 --> 03:50:00,308 DOCTOR, FIRST LINE OF ENTRY INTO 5982 03:50:00,308 --> 03:50:02,811 THE MEDICAL SYSTEM, SO YOUR 5983 03:50:02,811 --> 03:50:03,378 FAMILY PHYSICIANS, GENERAL 5984 03:50:03,378 --> 03:50:05,013 PRACTITIONERS ON ALL OF THE 5985 03:50:05,013 --> 03:50:06,848 THINGS YOU'VE BEEN TALKING 5986 03:50:06,848 --> 03:50:10,485 ABOUT, AND THE GOAL, I BELIEVE 5987 03:50:10,485 --> 03:50:13,321 JUST BEING RELEASED TO MAKE IT 5988 03:50:13,321 --> 03:50:19,361 MANDATORY FOR ALL HEALTH CARE 5989 03:50:19,361 --> 03:50:21,229 PROVIDERS, ONLINE, ALL WILL HAVE 5990 03:50:21,229 --> 03:50:23,298 TO TAKE IT, AN ACCEPTED PART OF 5991 03:50:23,298 --> 03:50:24,199 ONGOING MEDICAL EDUCATION THAT 5992 03:50:24,199 --> 03:50:25,734 THEY NEED TO DO EVERY YEAR, THAT 5993 03:50:25,734 --> 03:50:29,438 EVERYBODY WILL HAVE TO HAVE IT 5994 03:50:29,438 --> 03:50:31,940 SO DOCTORS, NURSE PRACTITIONERS, 5995 03:50:31,940 --> 03:50:33,041 OCCUPATIONAL THERAPISTS, SPEECH 5996 03:50:33,041 --> 03:50:34,276 THERAPISTS, MENTAL HEALTH 5997 03:50:34,276 --> 03:50:35,310 CLINICIANS, ANYBODY WORKING 5998 03:50:35,310 --> 03:50:38,180 WITHIN THE HEALTH CARE SYSTEM, 5999 03:50:38,180 --> 03:50:39,481 AND MAYBE THINKING ABOUT ALL OF 6000 03:50:39,481 --> 03:50:40,916 THOSE QUESTIONS AROUND HOW YOU 6001 03:50:40,916 --> 03:50:43,452 TALK ABOUT ALCOHOL ALLS, HOW YOU 6002 03:50:43,452 --> 03:50:45,620 APPROACH FAMILIES, HOW I 6003 03:50:45,620 --> 03:50:46,922 INTERACT WITH PATIENTS, WHETHER 6004 03:50:46,922 --> 03:50:49,224 IN BIRTH FAMILY, FOSTER FAMILY, 6005 03:50:49,224 --> 03:50:51,293 ADOPTIVE FAMILY, ALL OF THOSE 6006 03:50:51,293 --> 03:50:52,961 THINGS MEASURE NEED TO TAKE A 6007 03:50:52,961 --> 03:50:56,164 STEP BACK TO LOOKING AT OTHER 6008 03:50:56,164 --> 03:50:57,365 PLACES WHERE LIKE AT THE LOWEST 6009 03:50:57,365 --> 03:50:59,234 LEVEL IF YOU WILL OF THE MEDICAL 6010 03:50:59,234 --> 03:51:01,103 SYSTEM RATHER THAN LOOKING AT 6011 03:51:01,103 --> 03:51:02,070 PEDIATRICIANS, ET CETERA. 6012 03:51:02,070 --> 03:51:03,939 I JUST -- IT'S A QUESTION IF YOU 6013 03:51:03,939 --> 03:51:06,441 THOUGHT BIT. 6014 03:51:06,441 --> 03:51:12,681 6015 03:51:12,681 --> 03:51:14,549 >> THANK YOU, IF ANYONE WANTS TO 6016 03:51:14,549 --> 03:51:14,916 ANSWER. 6017 03:51:14,916 --> 03:51:15,417 >> I DO. 6018 03:51:15,417 --> 03:51:17,052 >> I'LL TALK ABOUT IT AND IF 6019 03:51:17,052 --> 03:51:20,555 OTHERS HAVE ANYTHING ELSE TO 6020 03:51:20,555 --> 03:51:20,756 SAY. 6021 03:51:20,756 --> 03:51:22,891 ACTUALLY TO YOUR FIRST POINT, I 6022 03:51:22,891 --> 03:51:25,660 ABSOLUTELY AGREE, I THINK BEING 6023 03:51:25,660 --> 03:51:29,531 ABLE TO HAVE, YOU KNOW, KIND OF 6024 03:51:29,531 --> 03:51:31,833 PEER RECOVERY SUPPORT, 6025 03:51:31,833 --> 03:51:33,902 MENTORSHIP FOR ADULT 6026 03:51:33,902 --> 03:51:34,669 POPULATIONS, AFFECTED ADULT 6027 03:51:34,669 --> 03:51:35,971 POPULATIONS IS IMPORTANT. 6028 03:51:35,971 --> 03:51:38,840 I THINK THAT IS SOMETHING THAT 6029 03:51:38,840 --> 03:51:41,343 WE ALL SHOULD THINK ABOUT. 6030 03:51:41,343 --> 03:51:44,846 I THINK WHAT'S REALLY 6031 03:51:44,846 --> 03:51:45,614 CHALLENGING UNFORTUNATELY IS 6032 03:51:45,614 --> 03:51:47,249 THAT THE WAY OUR ORGANIZATIONS 6033 03:51:47,249 --> 03:51:50,418 AND SYSTEMS ARE SET UP IS WE ARE 6034 03:51:50,418 --> 03:51:53,922 VERY SILOED AND SO OUR DIVISION 6035 03:51:53,922 --> 03:51:57,559 IS FOCUSED, YOU KNOW, WHERE WE 6036 03:51:57,559 --> 03:52:00,829 GO, WE THINK ABOUT, YOU KNOW, 6037 03:52:00,829 --> 03:52:02,030 THROUGH INFANT DISORDERS, 6038 03:52:02,030 --> 03:52:07,369 EVERYTHING THAT KIND OF BEYOND 6039 03:52:07,369 --> 03:52:09,571 INFANCY INTO CHILDHOOD, 6040 03:52:09,571 --> 03:52:10,672 ADULTHOOD IS IN A DIFFERENT 6041 03:52:10,672 --> 03:52:11,173 DIVISION. 6042 03:52:11,173 --> 03:52:15,177 ON TOP OF THAT SILOED IN TERMS 6043 03:52:15,177 --> 03:52:21,283 OF OUR -- THE DISABILITIES WE 6044 03:52:21,283 --> 03:52:22,484 FOCUS ON, VERY SILOED. 6045 03:52:22,484 --> 03:52:25,554 WE'RE THINKING ABOUT WAYS WE CAN 6046 03:52:25,554 --> 03:52:27,322 BRIDGE THOSE EFFORTS AND REALLY 6047 03:52:27,322 --> 03:52:29,624 THINK ABOUT THIS AS A LIFESPAN 6048 03:52:29,624 --> 03:52:34,796 APPROACH AND NOT JUST THINKING 6049 03:52:34,796 --> 03:52:37,232 ABOUT THE CHILD BUT ALSO INTO 6050 03:52:37,232 --> 03:52:38,934 ADULTHOOD SO THAT'S A VERY 6051 03:52:38,934 --> 03:52:40,602 IMPORTANT POINT AND WE WILL 6052 03:52:40,602 --> 03:52:47,509 DEFINITELY CONTINUE TO HAVE 6053 03:52:47,509 --> 03:52:50,478 THOSE DISCUSSIONS. 6054 03:52:50,478 --> 03:52:52,647 THE THINGS OTHER COUNTRIES, THE 6055 03:52:52,647 --> 03:52:55,083 PROGRAM YOU TALKED ABOUT IN 6056 03:52:55,083 --> 03:52:57,919 CANADA, THAT'S ALL JUST VERY, 6057 03:52:57,919 --> 03:52:59,921 YOU KNOW -- IT'S GREAT AND I 6058 03:52:59,921 --> 03:53:01,890 THINK THERE'S DEFINITELY A LOT 6059 03:53:01,890 --> 03:53:06,027 WE CAN LEARN FROM THOSE EFFORTS. 6060 03:53:06,027 --> 03:53:08,997 UNFORTUNATELY SYSTEMS ARE VERY 6061 03:53:08,997 --> 03:53:11,633 DIFFERENT, THERE'S A LOT OF 6062 03:53:11,633 --> 03:53:13,802 CHALLENGES, YOU KNOW, WE -- OUR 6063 03:53:13,802 --> 03:53:22,110 GROUP HAS BEEN TRYING TO WORK ON 6064 03:53:22,110 --> 03:53:23,645 BUILDING INTO CURRICULUM, 6065 03:53:23,645 --> 03:53:26,047 BEFORE, YOU KNOW, CURRICULUM AND 6066 03:53:26,047 --> 03:53:27,482 CERTIFICATION AND, YOU KNOW, ALL 6067 03:53:27,482 --> 03:53:28,450 OF THAT. 6068 03:53:28,450 --> 03:53:31,620 YOU KNOW, WE CONSTANTLY KIND OF 6069 03:53:31,620 --> 03:53:33,288 HIT, YOU KNOW, HIT A LOT OF 6070 03:53:33,288 --> 03:53:36,024 WAFFLES AND A LOT OF CHALLENGES 6071 03:53:36,024 --> 03:53:37,292 BEING ABLE TO DO THAT. 6072 03:53:37,292 --> 03:53:39,194 BEING ABLE TO BREAK DOWN THOSE 6073 03:53:39,194 --> 03:53:42,264 SILOS AS WELL AND BEING ABLE TO 6074 03:53:42,264 --> 03:53:47,168 FIGURE OUT HOW TO, YOU KNOW, GET 6075 03:53:47,168 --> 03:53:53,408 THAT DONE KIND OF WHILE, YOU 6076 03:53:53,408 --> 03:53:55,277 KNOW, DIFFERENT AREAS OF 6077 03:53:55,277 --> 03:53:56,044 SPECIALTIES ARE LEARNING AND, 6078 03:53:56,044 --> 03:53:59,314 YOU KNOW, AND KIND OF GETTING 6079 03:53:59,314 --> 03:54:01,283 THEIR TRAINING, I THINK THAT 6080 03:54:01,283 --> 03:54:03,184 WOULD BE GREAT. 6081 03:54:03,184 --> 03:54:04,452 TATIANA, EARLIER, WASN'T SURE IF 6082 03:54:04,452 --> 03:54:06,655 YOU WERE TALKING TO THE LARGER 6083 03:54:06,655 --> 03:54:09,724 GROUP OR US DIRECTLY WHAT ELSE 6084 03:54:09,724 --> 03:54:10,592 BEYOND TRAINING, YOU KNOW, I 6085 03:54:10,592 --> 03:54:12,560 THINK, YOU KNOW, IT'S TRICKY, 6086 03:54:12,560 --> 03:54:12,961 RIGHT? 6087 03:54:12,961 --> 03:54:13,995 BECAUSE THAT'S ONE OF THE THINGS 6088 03:54:13,995 --> 03:54:17,299 WE HEAR FROM JUST EVEN OUR 6089 03:54:17,299 --> 03:54:19,034 CLINICIANS, YOU KNOW, THEY 6090 03:54:19,034 --> 03:54:21,870 RECEIVE A LOT OF TRAINING, I 6091 03:54:21,870 --> 03:54:23,405 MEAN, YOU KNOW, EVEN WITH 6092 03:54:23,405 --> 03:54:24,839 SCREENING BRIEF INTERVENTION AND 6093 03:54:24,839 --> 03:54:27,142 REFERRAL TO TREATMENT, KATHY, I 6094 03:54:27,142 --> 03:54:28,543 HEARD YOU, YES, THAT'S VERY, 6095 03:54:28,543 --> 03:54:30,312 VERY IMPORTANT. 6096 03:54:30,312 --> 03:54:34,015 AND WE ARE NOT IGNORING THAT 6097 03:54:34,015 --> 03:54:35,550 PIECE BUT, YOU KNOW, I THINK 6098 03:54:35,550 --> 03:54:38,420 IT'S JUST THERE'S A LOT. 6099 03:54:38,420 --> 03:54:42,490 CLINICIANS ARE HIT WITH A LOT. 6100 03:54:42,490 --> 03:54:45,994 I THINK THERE NEEDS TO BE, YOU 6101 03:54:45,994 --> 03:54:49,497 KNOW, A PLACE WHERE 6102 03:54:49,497 --> 03:54:51,032 CLINICIANS -- IT'S NOT JUST 6103 03:54:51,032 --> 03:54:52,400 TRAINING BUT A LOT OF TIMES, YOU 6104 03:54:52,400 --> 03:54:54,202 KNOW, EVEN IF THEY ARE TRAINED, 6105 03:54:54,202 --> 03:54:57,505 THEY DON'T HAVE RESOURCES, DON'T 6106 03:54:57,505 --> 03:54:59,474 HAVE, YOU KNOW, JUST THE TOOLS 6107 03:54:59,474 --> 03:55:02,010 TO BE ABLE TO REFER PEOPLE OR, 6108 03:55:02,010 --> 03:55:04,312 YOU KNOW, KNOW WHERE TO REFER 6109 03:55:04,312 --> 03:55:05,613 PEOPLE NEXT, YOU KNOW. 6110 03:55:05,613 --> 03:55:10,018 SO BEING ABLE TO KNOW WHERE 6111 03:55:10,018 --> 03:55:11,319 RESOURCES ARE, ALSO POLICY, A 6112 03:55:11,319 --> 03:55:13,088 LOT OF THINGS ARE PREVENTING, 6113 03:55:13,088 --> 03:55:15,490 YOU KNOW, PEOPLE FROM BEING ABLE 6114 03:55:15,490 --> 03:55:17,559 TO, YOU KNOW, TALK ABOUT THESE 6115 03:55:17,559 --> 03:55:19,961 THINGS AND DOCUMENT IT AND 6116 03:55:19,961 --> 03:55:21,129 PROVIDE THE APPROPRIATE 6117 03:55:21,129 --> 03:55:23,231 RESOURCES AND WHAT NOT SO I KNOW 6118 03:55:23,231 --> 03:55:25,066 WE ALL KNOW WHAT THE ISSUES ARE 6119 03:55:25,066 --> 03:55:27,302 BUT SOMETIMES I THINK TRYING TO 6120 03:55:27,302 --> 03:55:28,703 BREAK DOWN THOSE WALLS AND SIGH 6121 03:55:28,703 --> 03:55:31,039 LOADS AND GET SOME OF THAT DONE 6122 03:55:31,039 --> 03:55:38,780 IS ALWAYS A CHALLENGE. 6123 03:55:38,780 --> 03:55:39,481 >> THANK YOU. 6124 03:55:39,481 --> 03:55:41,082 IT'S IMPORTANT WE'RE ALL AROUND 6125 03:55:41,082 --> 03:55:44,252 THE SAME TABLE THINKING ABOUT 6126 03:55:44,252 --> 03:55:45,120 POLICIES AND DIFFERENT 6127 03:55:45,120 --> 03:55:46,421 APPROACHES, AND SHARING. 6128 03:55:46,421 --> 03:55:48,523 I IT'S IMPORTANT WHAT DIFFERENT 6129 03:55:48,523 --> 03:55:50,058 COUNTRIES DO, WE CANNOT DO WHAT 6130 03:55:50,058 --> 03:55:52,994 SOME OTHER COUNTRIES DO BUT I 6131 03:55:52,994 --> 03:55:55,930 THINK SOMETHING WAS REALLY 6132 03:55:55,930 --> 03:56:00,001 IMPORTANT TO ME, WHAT JAN SAID 6133 03:56:00,001 --> 03:56:01,302 ABOUT MENTORING MODELS. 6134 03:56:01,302 --> 03:56:05,340 I STARTED TO THINK DO WE HAVE 6135 03:56:05,340 --> 03:56:07,208 MENTORING MODELS AND WHAT KIND 6136 03:56:07,208 --> 03:56:09,744 OF MENTORINGS MODELS WE HAVE 6137 03:56:09,744 --> 03:56:12,480 IMPLEMENTED, AT ALL DIFFERENT 6138 03:56:12,480 --> 03:56:13,048 LEVELS. 6139 03:56:13,048 --> 03:56:14,449 IN TERMS OF EVIDENCE. 6140 03:56:14,449 --> 03:56:16,518 I CANNOT THINK ABOUT NOT VERY 6141 03:56:16,518 --> 03:56:17,719 MUCH, NOT VERY MUCH. 6142 03:56:17,719 --> 03:56:18,720 IT'S MORE DIFFICULT. 6143 03:56:18,720 --> 03:56:20,121 SOMETHING ELSE TO THINK ABOUT. 6144 03:56:20,121 --> 03:56:22,857 THANK YOU. 6145 03:56:22,857 --> 03:56:27,062 WE DO HAVE -- I KATIE, I SEE OUR 6146 03:56:27,062 --> 03:56:27,262 HAND. 6147 03:56:27,262 --> 03:56:27,729 YOU'RE NEXT. 6148 03:56:27,729 --> 03:56:29,364 >> I WANTED TO GET TO TRAINING, 6149 03:56:29,364 --> 03:56:30,365 YOUR ORIGINAL QUESTION. 6150 03:56:30,365 --> 03:56:33,401 ONE OF THE THINGS THAT WE 6151 03:56:33,401 --> 03:56:36,037 DISCOVERED, WELL, THAT WAS 6152 03:56:36,037 --> 03:56:39,874 PROVEN DURING THE PROCESS OF 6153 03:56:39,874 --> 03:56:42,377 RESEARCH WITH PATRICK CORRIGAN, 6154 03:56:42,377 --> 03:56:44,145 CERTAINLY I EXPERIENCED 30-SOME 6155 03:56:44,145 --> 03:56:46,748 YEARS AGO, PEOPLE WILL HEAR THE 6156 03:56:46,748 --> 03:56:47,749 INFORMATION, THEY SAY, OH, OKAY, 6157 03:56:47,749 --> 03:56:48,616 I GET IT. 6158 03:56:48,616 --> 03:56:50,251 THAT MAKES SENSE. 6159 03:56:50,251 --> 03:56:52,821 THEY ARE NOT MOTIVATED TO DO 6160 03:56:52,821 --> 03:56:54,556 ANYTHING WITHOUT HAVING THAT 6161 03:56:54,556 --> 03:56:57,525 EXPERIENCE OF HEARING SOMEBODY 6162 03:56:57,525 --> 03:57:00,495 WITH A LIVED EXPERIENCE. 6163 03:57:00,495 --> 03:57:02,363 THAT DOESN'T JUST MEAN BIRTH 6164 03:57:02,363 --> 03:57:05,100 MOTHER, COULD MEAN A PERSON 6165 03:57:05,100 --> 03:57:07,402 LIVING WITH AN FASD. 6166 03:57:07,402 --> 03:57:08,937 THAT'S THE CLINCHER THAT MAKES 6167 03:57:08,937 --> 03:57:10,505 PEOPLE SAY I SHOULD DO MORE. 6168 03:57:10,505 --> 03:57:13,208 YOU HEAR THAT, IT'S WELL 6169 03:57:13,208 --> 03:57:16,978 DOCUMENTED IN OUR RESEARCH THAT 6170 03:57:16,978 --> 03:57:18,613 OB/GYNS REPORTED THAT BUT I 6171 03:57:18,613 --> 03:57:21,116 THINK THAT AS WE PUSH FORWARD 6172 03:57:21,116 --> 03:57:25,186 AND TRY TO MOVE THIS THING AND 6173 03:57:25,186 --> 03:57:26,387 REALLY MAKE SUSTAINABLE CHANGE, 6174 03:57:26,387 --> 03:57:29,791 AGAIN I KNOW, I SOUND LIKE A 6175 03:57:29,791 --> 03:57:31,326 BROKEN RECORD, BUT WE REALLY 6176 03:57:31,326 --> 03:57:32,760 NEED TO THINK ABOUT, YOU KNOW, 6177 03:57:32,760 --> 03:57:34,696 WE SHOULDN'T BE JUST MEASURING, 6178 03:57:34,696 --> 03:57:36,264 YOU KNOW, THEY LEARNED MORE, 6179 03:57:36,264 --> 03:57:38,133 THEY HAVE BETTER KNOWLEDGE, ALL 6180 03:57:38,133 --> 03:57:39,100 THAT. 6181 03:57:39,100 --> 03:57:40,635 THAT'S ALL WONDERFUL. 6182 03:57:40,635 --> 03:57:43,505 BUT HOW IS IT GOING TO -- WHAT 6183 03:57:43,505 --> 03:57:44,806 ARE THEY GOING TO DO? 6184 03:57:44,806 --> 03:57:47,942 RESEARCH NEXT 6185 03:57:47,942 --> 03:57:51,913 RESEARCH NEVER WANTS TO LOOK AT 6186 03:57:51,913 --> 03:57:52,780 BEHAVIOR CHANGES. 6187 03:57:52,780 --> 03:57:54,115 HOW IS THE SYSTEM GOING TO 6188 03:57:54,115 --> 03:57:54,449 IMPROVE? 6189 03:57:54,449 --> 03:57:57,185 YOU CAN LOOK AT SYSTEMS OF CARE 6190 03:57:57,185 --> 03:57:58,419 LIKE FOSTER CARE, FOR INSTANCE. 6191 03:57:58,419 --> 03:58:00,555 IF FAMILIES WANT TO BE A FOSTER 6192 03:58:00,555 --> 03:58:04,492 CARE PARENT THERE'S SOME GREAT 6193 03:58:04,492 --> 03:58:06,995 CURRICULA OUT THERE TEACHING 6194 03:58:06,995 --> 03:58:08,863 PARENTS, NUMBER ONE, LIKE THE 6195 03:58:08,863 --> 03:58:13,234 EIGHT MAGIC KEYS, THERE'S A NEW 6196 03:58:13,234 --> 03:58:13,601 ONE. 6197 03:58:13,601 --> 03:58:15,970 JAN LATKE WAS -- THAT'S A 6198 03:58:15,970 --> 03:58:17,739 PRODUCT SHE PUT OUT WITH DEB 6199 03:58:17,739 --> 03:58:21,376 MANY YEARS AGO BUT TEACHES 6200 03:58:21,376 --> 03:58:22,877 PARENTS HOW TO CREATE AND 6201 03:58:22,877 --> 03:58:24,979 ENVIRONMENT BUT NOT TAKE THE 6202 03:58:24,979 --> 03:58:25,713 BEHAVIORS PERSONALLY LIKE HE'S 6203 03:58:25,713 --> 03:58:27,815 DOING THIS TO GET AT ME. 6204 03:58:27,815 --> 03:58:30,885 THEY UNDERSTAND, YOU KNOW, THE 6205 03:58:30,885 --> 03:58:32,587 EIGHT CORE ISSUES OF BEHAVIORS 6206 03:58:32,587 --> 03:58:34,956 THAT YOU'RE GOING TO SEE YOU A 6207 03:58:34,956 --> 03:58:36,491 HOW DO I SET UP THE ENVIRONMENT 6208 03:58:36,491 --> 03:58:39,093 AND RESPOND AND DO THIS. 6209 03:58:39,093 --> 03:58:41,963 THE OTHER PIECE, THERE ARE SOME 6210 03:58:41,963 --> 03:58:43,798 AREAS, AGAIN, THE EXAMINATIONS, 6211 03:58:43,798 --> 03:58:47,202 YOU KNOW, BUT GETTING POLICY 6212 03:58:47,202 --> 03:58:48,536 CHANGE WITHIN ASSOCIATIONS, AND 6213 03:58:48,536 --> 03:58:51,806 LASTLY I'LL SAY WE HAVE HAD A 6214 03:58:51,806 --> 03:58:53,575 MENTORSHIP PROGRAM FOR BIRTH 6215 03:58:53,575 --> 03:58:56,177 MOTHERS, THROUGH, AND NOW IT'S 6216 03:58:56,177 --> 03:58:57,712 EXPANDED THROUGH THE -- IT 6217 03:58:57,712 --> 03:59:00,882 STARTED AS CIRCLE OF HOPE, NOW 6218 03:59:00,882 --> 03:59:02,116 IT'S AN ONLINE MEETING, I DIDN'T 6219 03:59:02,116 --> 03:59:07,255 GET TO TALK ABOUT IT. 6220 03:59:07,255 --> 03:59:08,456 EVERY THURSDAY TREATMENT CENTERS 6221 03:59:08,456 --> 03:59:10,325 CALL IN FROM ALL OVER WITH WOMEN 6222 03:59:10,325 --> 03:59:14,395 THAT COME IN, WOMEN THAT HAVE 6223 03:59:14,395 --> 03:59:15,263 LONG-TERM RECOVERY, BRAND-NEW 6224 03:59:15,263 --> 03:59:16,364 WOMEN THAT NEED ALL KINDS OF 6225 03:59:16,364 --> 03:59:20,101 THINGS, HOW DO I GET MY CHILD 6226 03:59:20,101 --> 03:59:20,868 DIAGNOSED, AND THAT'S WHERE A 6227 03:59:20,868 --> 03:59:22,870 LOT OF THE STORIES COME IN BUT 6228 03:59:22,870 --> 03:59:25,340 THE SAME KIND OF MODEL AND 6229 03:59:25,340 --> 03:59:29,711 REALLY THAT'S A 12-STEP MODEL OF 6230 03:59:29,711 --> 03:59:31,346 SUPPORT WHICH PROVIDES, YOU 6231 03:59:31,346 --> 03:59:33,982 KNOW, A 12-STEP MODEL LIKE 6232 03:59:33,982 --> 03:59:35,850 ALCOHOLICS ANONYMOUS BEING THE 6233 03:59:35,850 --> 03:59:36,951 FIRST 12-STEP PROGRAM, PROVIDED 6234 03:59:36,951 --> 03:59:39,687 EACH PERSON THAT COMES IN WITH A 6235 03:59:39,687 --> 03:59:42,323 MENTOR, SO IT'S A VERY EASY 6236 03:59:42,323 --> 03:59:44,826 SYSTEM TO CREATE, BUT IT'S ONE 6237 03:59:44,826 --> 03:59:46,361 THAT REALLY HASN'T BEEN CREATED 6238 03:59:46,361 --> 03:59:48,529 BUT, YOU KNOW, IT'S ONE THAT 6239 03:59:48,529 --> 03:59:51,065 DOESN'T REALLY NEED A LOT OF 6240 03:59:51,065 --> 03:59:52,066 OVERSIGHT, YOU KNOW. 6241 03:59:52,066 --> 03:59:53,268 I KNOW I'M SAYING SOME THINGS 6242 03:59:53,268 --> 03:59:54,569 THAT SOME PEOPLE WOULD JUMP ON. 6243 03:59:54,569 --> 03:59:58,740 WHAT DO YOU MEAN, OF COURSE YOU 6244 03:59:58,740 --> 04:00:01,142 NEED OVERSIGHT, YES, BUT SOME 6245 04:00:01,142 --> 04:00:02,343 THINGS CAN BE STARTED. 6246 04:00:02,343 --> 04:00:04,212 IT MAY NOT MEAN IT'S PERFECT OR 6247 04:00:04,212 --> 04:00:06,314 WHAT HAVE YOU BUT I THINK WE CAN 6248 04:00:06,314 --> 04:00:07,515 MAKE CHANGES. 6249 04:00:07,515 --> 04:00:09,584 I JUST GET CONCERNED THAT IT'S 6250 04:00:09,584 --> 04:00:12,487 LIKE, WELL, THERE'S A LOT OF 6251 04:00:12,487 --> 04:00:12,754 BARRIERS. 6252 04:00:12,754 --> 04:00:14,088 EVERY STATE'S DIFFERENT. 6253 04:00:14,088 --> 04:00:14,756 EVERY SYSTEM'S DIFFERENT. 6254 04:00:14,756 --> 04:00:17,925 BUT THERE ARE THINGS THAT WE CAN 6255 04:00:17,925 --> 04:00:21,529 PUSH THROUGH, IF IT'S ATTACHED 6256 04:00:21,529 --> 04:00:24,032 TO FUNDING, AND GETTING THAT 6257 04:00:24,032 --> 04:00:24,932 CERTIFICATE, THAT LICENSE, THAT 6258 04:00:24,932 --> 04:00:27,435 WHATEVER IT IS YOU'RE TRYING TO 6259 04:00:27,435 --> 04:00:30,338 GET AT, WE CAN TRY TO PUSH IT. 6260 04:00:30,338 --> 04:00:34,042 THAT'S WHAT I FEEL WHERE WE'VE 6261 04:00:34,042 --> 04:00:36,678 FALLEN SHORT IS THAT IT'S BEEN 6262 04:00:36,678 --> 04:00:38,479 TOO MUCH OF TRAINING, WONDERFUL 6263 04:00:38,479 --> 04:00:41,182 TRAINING, WE LEARNED A LOT, SEE 6264 04:00:41,182 --> 04:00:42,283 'YA LATER, BYE-BYE, AND THEN 6265 04:00:42,283 --> 04:00:43,484 NOTHING MORE. 6266 04:00:43,484 --> 04:00:45,553 SO THERE'S NEVER BEEN ANY 6267 04:00:45,553 --> 04:00:46,554 MEASURABLE LIKE, OKAY, HOW ARE 6268 04:00:46,554 --> 04:00:48,089 WE GOING TO CHANGE THE SYSTEM 6269 04:00:48,089 --> 04:00:51,159 NOW AND HOW ARE WE GOING TO MAKE 6270 04:00:51,159 --> 04:00:52,026 SURE EVERYBODY IN THE 6271 04:00:52,026 --> 04:00:52,994 UNIVERSITY'S LEARNING THIS OR 6272 04:00:52,994 --> 04:00:55,730 WHATEVER IT IS. 6273 04:00:55,730 --> 04:00:56,531 WHATEVER SYSTEM. 6274 04:00:56,531 --> 04:00:56,731 SORRY. 6275 04:00:56,731 --> 04:00:58,599 >> ALL RIGHT. 6276 04:00:58,599 --> 04:00:59,233 THANK YOU. 6277 04:00:59,233 --> 04:01:02,437 SO WE WANT TO CHANGE HERE. 6278 04:01:02,437 --> 04:01:05,807 I CAN SEE TWO HANDS AND WE HAVE 6279 04:01:05,807 --> 04:01:10,411 SOME TIME, C.J., YOU'RE FIRST. 6280 04:01:10,411 --> 04:01:11,379 >> I'LL LOWER MY HAND. 6281 04:01:11,379 --> 04:01:15,216 I JUST WANT TO GET THIS ON 6282 04:01:15,216 --> 04:01:15,717 RECORD. 6283 04:01:15,717 --> 04:01:18,586 I WROTE IT DOWN IN THE CHAT. 6284 04:01:18,586 --> 04:01:20,588 I WANTED TO SAY HOW CAN YOU 6285 04:01:20,588 --> 04:01:21,889 MEASURE SOMETHING DOCTORS ARE 6286 04:01:21,889 --> 04:01:22,990 UNWILLING TO DIAGNOSE AND 6287 04:01:22,990 --> 04:01:26,160 SYSTEMS ARE ALL TOO EAGER TO 6288 04:01:26,160 --> 04:01:27,362 PASS MORAL JUDGMENT ON AND 1/3 6289 04:01:27,362 --> 04:01:29,030 OF THE COUNTRY WILL LOCK YOU UP 6290 04:01:29,030 --> 04:01:31,966 AND TAKE AWAY YOUR CHILD FOR 6291 04:01:31,966 --> 04:01:33,067 DISCLOSURE, THE OTHER UNSPOKEN 6292 04:01:33,067 --> 04:01:34,802 ISSUE IS RACIAL BIAS THAT SEEMS 6293 04:01:34,802 --> 04:01:37,538 TO BE EVIDENT AND 6294 04:01:37,538 --> 04:01:39,874 OVERREPRESENTED IN FOSTER CARE 6295 04:01:39,874 --> 04:01:41,042 AND IN JAIL SYSTEMS. 6296 04:01:41,042 --> 04:01:43,111 THOSE ARE THE TWO THINGS I WANT 6297 04:01:43,111 --> 04:01:45,313 ON RECORD BECAUSE I THINK THEY 6298 04:01:45,313 --> 04:01:47,181 ARE BIG ISSUES THAT NEED TO BE 6299 04:01:47,181 --> 04:01:47,648 ADDRESSED. 6300 04:01:47,648 --> 04:01:50,251 THE OTHER ONE IS ONE OF THE WAYS 6301 04:01:50,251 --> 04:01:52,453 I'VE BEEN THINKING ABOUT 6302 04:01:52,453 --> 04:01:56,157 TACKLING THE STIGMA IS FOR 6303 04:01:56,157 --> 04:01:57,592 PEOPLE WITH FETAL COLLABORATIVE 6304 04:01:57,592 --> 04:01:59,093 SPECTRUM DISORDER AND BIRTH 6305 04:01:59,093 --> 04:02:02,930 MOMS, THEY DON'T HAVE TO BE 6306 04:02:02,930 --> 04:02:09,070 RELATED, TO KIND OF BE SHOWN AS 6307 04:02:09,070 --> 04:02:09,303 ALLIES. 6308 04:02:09,303 --> 04:02:11,272 YOU CAN'T HAVE THE PERPETRATOR 6309 04:02:11,272 --> 04:02:12,607 AND THE VICTIM. 6310 04:02:12,607 --> 04:02:14,108 YOU'RE BIOLOGY PEOPLE DOWN TO 6311 04:02:14,108 --> 04:02:15,676 LIKE JUST WORDS. 6312 04:02:15,676 --> 04:02:17,845 PEOPLE ARE PEOPLE. 6313 04:02:17,845 --> 04:02:20,148 AND LIKE I SAID BEFORE, IF 6314 04:02:20,148 --> 04:02:24,419 YOU -- FOR ME, MOM HAS ALWAYS 6315 04:02:24,419 --> 04:02:25,386 TALKED VERY LOVING, VERY 6316 04:02:25,386 --> 04:02:27,588 HONESTLY ABOUT MY BIRTH MOM'S 6317 04:02:27,588 --> 04:02:27,922 PROBLEMS. 6318 04:02:27,922 --> 04:02:29,457 SHE'S NEVER SAID A BAD WORD 6319 04:02:29,457 --> 04:02:32,059 ABOUT MY BIRTH MOM, ONLY SHE HAD 6320 04:02:32,059 --> 04:02:32,326 TROUBLES. 6321 04:02:32,326 --> 04:02:35,797 THAT SHE WAS AN ALCOHOLIC, THAT 6322 04:02:35,797 --> 04:02:36,564 THESE THINGS HAPPENED. 6323 04:02:36,564 --> 04:02:38,099 IT WAS THE REST OF THE WORLD 6324 04:02:38,099 --> 04:02:41,803 THAT TOLD ME I WAS ALLOWED TO BE 6325 04:02:41,803 --> 04:02:43,337 JUDGMENTAL OF HER. 6326 04:02:43,337 --> 04:02:46,340 BUT IT WAS KATHY MITCHELL AND IT 6327 04:02:46,340 --> 04:02:51,212 WAS PIPA AND IT WAS LINDA 6328 04:02:51,212 --> 04:02:54,615 MITCHELL TWO TOLD ME, SHOWED 6329 04:02:54,615 --> 04:02:56,050 THEY THEIR HUMANITY, GAVE ME THE 6330 04:02:56,050 --> 04:02:59,454 OKAY TO FORGIVE AND BE OKAY WITH 6331 04:02:59,454 --> 04:03:02,190 MY OWN DIAGNOSIS. 6332 04:03:02,190 --> 04:03:04,025 AND WITHOUT THAT ALLYSHIP I 6333 04:03:04,025 --> 04:03:05,693 REALLY THINK WE'RE GOING TO BE 6334 04:03:05,693 --> 04:03:05,893 STUCK. 6335 04:03:05,893 --> 04:03:07,895 I THINK THAT'S ALL I HAVE TO SAY 6336 04:03:07,895 --> 04:03:09,831 ABOUT THAT. 6337 04:03:09,831 --> 04:03:13,568 >> ALL RIGHT. 6338 04:03:13,568 --> 04:03:14,535 THANK YOU. 6339 04:03:14,535 --> 04:03:16,604 ALSO WHEN YOU SPOKE ABOUT GRIEF, 6340 04:03:16,604 --> 04:03:18,840 IT'S SOMETHING WE DO NEED TO 6341 04:03:18,840 --> 04:03:21,042 THINK ABOUT MORE. 6342 04:03:21,042 --> 04:03:22,210 THANK YOU, CJ. 6343 04:03:22,210 --> 04:03:23,744 JAN, I SEE YOUR HAND. 6344 04:03:23,744 --> 04:03:27,048 AND I THINK THIS WILL BE THE 6345 04:03:27,048 --> 04:03:28,449 LAST QUESTION BEFORE WE HAVE 6346 04:03:28,449 --> 04:03:28,950 BREAK. 6347 04:03:28,950 --> 04:03:30,618 >> TO FOLLOW UP TO THAT, TO SAY 6348 04:03:30,618 --> 04:03:33,321 WITH RESPECT TO ALL OF THIS, WE 6349 04:03:33,321 --> 04:03:36,591 NEED TO THINK ABOUT WHAT DO 6350 04:03:36,591 --> 04:03:38,893 PEOPLE WITH FASD, WHAT ARE 6351 04:03:38,893 --> 04:03:40,094 FAMILIES, MORE SPECIFICALLY WHAT 6352 04:03:40,094 --> 04:03:43,364 DO PEOPLE WITH FASD NEED GOING 6353 04:03:43,364 --> 04:03:45,199 FORWARD IN GROWING UP, WHAT DO 6354 04:03:45,199 --> 04:03:45,867 THEY NEED? 6355 04:03:45,867 --> 04:03:47,835 WHAT ARE THE THINGS THEY NEED. 6356 04:03:47,835 --> 04:03:49,270 EVERYBODY TALKS ABOUT SERVICES 6357 04:03:49,270 --> 04:03:50,238 AN SUPPORTS, NOBODY'S REALLY 6358 04:03:50,238 --> 04:03:51,973 TALKED ABOUT THE MOST IMPORTANT, 6359 04:03:51,973 --> 04:03:53,407 EXACTLY WHAT THEY ARE, WHAT THEY 6360 04:03:53,407 --> 04:03:57,812 WOULD LOOK LIKE, WHERE THEY COME 6361 04:03:57,812 --> 04:04:01,082 FROM, HOW WE DO IT, BEST PERSON 6362 04:04:01,082 --> 04:04:02,316 OR PEOPLE TO DO IT, A DISCUSSION 6363 04:04:02,316 --> 04:04:03,284 THAT NEEDS TO HAPPEN. 6364 04:04:03,284 --> 04:04:05,286 BECAUSE I THINK IT'S REALLY, 6365 04:04:05,286 --> 04:04:07,221 REALLY IMPORTANT. 6366 04:04:07,221 --> 04:04:08,222 >> THANK YOU. 6367 04:04:08,222 --> 04:04:10,258 THANK YOU, JAN. 6368 04:04:10,258 --> 04:04:13,027 WE DO HAVE THE SAME APPROACH, 6369 04:04:13,027 --> 04:04:14,395 PREVIOUSLY WHEN WE HAD IF YOU 6370 04:04:14,395 --> 04:04:16,898 REMEMBER MEETING WHEN WE DISCUSS 6371 04:04:16,898 --> 04:04:19,400 DIFFERENT SERVICES, WE COULD SEE 6372 04:04:19,400 --> 04:04:21,035 SOME DISCONNECT BETWEEN SOME 6373 04:04:21,035 --> 04:04:22,503 WONDERFUL SERVICES AND PROGRAMS 6374 04:04:22,503 --> 04:04:23,571 AND WHAT PEOPLE NEED. 6375 04:04:23,571 --> 04:04:25,640 SO THANK YOU. 6376 04:04:25,640 --> 04:04:28,276 WE HAVE BRIEF BREAK, VERY BRIEF 6377 04:04:28,276 --> 04:04:28,943 BREAK. 6378 04:04:28,943 --> 04:04:31,445 AT 3:20 WE'RE COMING BACK TO 6379 04:04:31,445 --> 04:04:32,346 CONTINUE OUR PRESENTATIONS AND 6380 04:04:32,346 --> 04:04:32,647 DISCUSSION. 6381 04:04:32,647 --> 04:04:33,993 THANK YOU. 6382 04:04:35,149 --> 04:04:49,203 6383 04:04:49,203 --> 04:04:56,643 >> WE'RE LIVE NOW. THIS IS OUR LAST SEGMENT OF 6384 04:04:56,643 --> 04:04:57,111 PRESENTATIONS. 6385 04:04:57,111 --> 04:04:58,412 AND THIS IS WHY IT'S IMPORTANT 6386 04:04:58,412 --> 04:05:02,149 TO MEET IN PERSON. 6387 04:05:02,149 --> 04:05:09,590 I SPEAK TO PEOPLE ON ZOOM, WE 6388 04:05:09,590 --> 04:05:10,891 HAVE VERY GOOD DISCUSSIONS. 6389 04:05:10,891 --> 04:05:14,261 WHAT I DID FOR LAST SESSION WE 6390 04:05:14,261 --> 04:05:20,834 HEAR FROM NIH INSTITUTES, 6391 04:05:20,834 --> 04:05:21,835 REPRESENTATIVES WHICH SPEAK 6392 04:05:21,835 --> 04:05:23,904 ABOUT PROGRAMS, WHAT'S BEEN DONE 6393 04:05:23,904 --> 04:05:24,571 IN 2023. 6394 04:05:24,571 --> 04:05:33,013 WE HAVE TIME FOR DISCUSSIONS. 6395 04:05:33,013 --> 04:05:43,557 WE'LL BEGIN WITH PRESENTATION BY 6396 04:05:44,458 --> 04:05:45,426 BILL DUNTY. 6397 04:05:45,426 --> 04:05:49,196 >> FOR THOSE NEW ON THE 6398 04:05:49,196 --> 04:05:52,599 COMMITTEE I'M BILL DUNTY, NIAAA 6399 04:05:52,599 --> 04:05:54,968 RESEARCH COORDINATOR ASKED TO 6400 04:05:54,968 --> 04:05:59,540 PROVIDE SUMMARY OF ACTIVITIES 6401 04:05:59,540 --> 04:06:00,908 OVER FISCAL YEAR 2023. 6402 04:06:00,908 --> 04:06:04,745 I WANT TO BEGIN WITH SOME SAD 6403 04:06:04,745 --> 04:06:06,180 NEWS THAT OUR FORMER COLLEAGUE 6404 04:06:06,180 --> 04:06:09,583 AND FRIEND DR. DALE HERELD 6405 04:06:09,583 --> 04:06:12,853 PASSED AWAY ON FRIDAY, APRIL 26, 6406 04:06:12,853 --> 04:06:14,421 AFTER A LONG ILLNESS. 6407 04:06:14,421 --> 04:06:17,891 DALE WAS A PROGRAM OFFICER IN 6408 04:06:17,891 --> 04:06:18,992 DIVISION OF METABOLISM AND 6409 04:06:18,992 --> 04:06:21,728 HEALTH EFFECTS FOR OVER A 6410 04:06:21,728 --> 04:06:24,131 DECADE, MANAGED THE FASD 6411 04:06:24,131 --> 04:06:26,667 RESEARCH PORTFOLIO AND SERVED AS 6412 04:06:26,667 --> 04:06:33,006 PROJECT SCIENTIST FOR MANY 6413 04:06:33,006 --> 04:06:35,609 NIAAA-FUNDED CONSORTIA, 6414 04:06:35,609 --> 04:06:41,448 INCLUDING PASS NETWORK, CIFASD 6415 04:06:41,448 --> 04:06:45,819 CONSORTIUM, A REPRESENTATIVE ON 6416 04:06:45,819 --> 04:06:47,120 MANY COMMITTEES INCLUDING THIS 6417 04:06:47,120 --> 04:06:49,289 COMMITTEE FOR MANY YEARS, 6418 04:06:49,289 --> 04:06:51,825 CONTRIBUTOR TO THE FASD FIELD IN 6419 04:06:51,825 --> 04:06:52,593 MANY WAYS. 6420 04:06:52,593 --> 04:06:54,895 DALE WILL BE DEEPLY MISSED BY 6421 04:06:54,895 --> 04:07:04,738 HIS COLLEAGUES, FRIENDS, AND 6422 04:07:04,738 --> 04:07:05,839 FAMILY. 6423 04:07:05,839 --> 04:07:08,008 NIAAA'S MISSION TO DISSEMINATE 6424 04:07:08,008 --> 04:07:09,343 FUNDAMENTAL KNOWLEDGE ABOUT 6425 04:07:09,343 --> 04:07:11,311 EFFECTS ON ALCOHOL ON HUMAN 6426 04:07:11,311 --> 04:07:13,480 HEALTH AND WELL-BEING. 6427 04:07:13,480 --> 04:07:14,481 TO IMPROVE TO DIAGNOSIS, 6428 04:07:14,481 --> 04:07:16,617 PREVENTION AND TREATMENT OF 6429 04:07:16,617 --> 04:07:20,587 ALCOHOL-RELATED PROBLEMS ACROSS 6430 04:07:20,587 --> 04:07:22,122 THE LIFESPAN. 6431 04:07:22,122 --> 04:07:26,093 NIAAA HAS SUPPORTED FOUR MAIN 6432 04:07:26,093 --> 04:07:27,928 AREAS OF FASD RESEARCH, THROUGH 6433 04:07:27,928 --> 04:07:30,998 OUR GRANTS AND OTHER ACTIVITIES, 6434 04:07:30,998 --> 04:07:39,106 WE SUPPORT RESEARCH IN FASD 6435 04:07:39,106 --> 04:07:40,307 ETIOLOGY, PREVENTION, 6436 04:07:40,307 --> 04:07:41,074 INTERVENTIONS, DIAGNOSIS. 6437 04:07:41,074 --> 04:07:44,711 OVER THE LAST FIVE YEARS NIAAA'S 6438 04:07:44,711 --> 04:07:47,447 RESEARCH AN TRAINING BUDGET HAS 6439 04:07:47,447 --> 04:07:50,284 BEEN ON THE RISE WITH $458 6440 04:07:50,284 --> 04:07:55,956 MILLION BEING ALLOCATED IN 6441 04:07:55,956 --> 04:07:57,491 FISCAL YEAR 2023. 6442 04:07:57,491 --> 04:07:59,359 AWARDS TO FASD RESEARCH OVER THE 6443 04:07:59,359 --> 04:08:01,094 SAME FIVE YEARS REMAINED 6444 04:08:01,094 --> 04:08:03,630 RELATIVELY STEADY, MAKING UP 7% 6445 04:08:03,630 --> 04:08:12,072 OF OUR INSTITUTE'S ENTIRE 6446 04:08:12,072 --> 04:08:13,607 RESEARCH AND TRAINING BUDGETP 6447 04:08:13,607 --> 04:08:20,047 6.6% IN FISCAL YEAR IN 2023 ON 6448 04:08:20,047 --> 04:08:24,251 THE TABLE BELOW, THAT REPRESENTS 6449 04:08:24,251 --> 04:08:26,787 A LITTLE OVER A $30 MILLION 6450 04:08:26,787 --> 04:08:28,956 INVESTMENT TO SUPPORT 96 FASD 6451 04:08:28,956 --> 04:08:32,426 RESEARCH GRANTS IN TOTAL. 6452 04:08:32,426 --> 04:08:34,861 AND OF THOSE 96, 16 WERE NEW 6453 04:08:34,861 --> 04:08:43,270 AWARDS MADE IN FISCAL YEAR 2023. 6454 04:08:43,270 --> 04:08:44,905 NOW, NIAAA SUPPORTS FASD 6455 04:08:44,905 --> 04:08:46,673 RESEARCH AT INSTITUTES ACROSS 6456 04:08:46,673 --> 04:08:48,542 THE UNITED STATES, AND HERE I'M 6457 04:08:48,542 --> 04:08:51,378 SHOWING A MAP OF THOSE 6458 04:08:51,378 --> 04:08:54,114 INSTITUTES WITH FASD AWARDS IN 6459 04:08:54,114 --> 04:08:54,681 FISCAL YEAR 2023. 6460 04:08:54,681 --> 04:08:57,851 I DO WANT TO DRAW YOUR ATTENTION 6461 04:08:57,851 --> 04:09:00,854 TO THE COLOR CODING ON THE MAP. 6462 04:09:00,854 --> 04:09:03,790 THE DARKER THE BLUE, THE LARGER 6463 04:09:03,790 --> 04:09:07,828 THE TOTAL COST AWARDED AT A 6464 04:09:07,828 --> 04:09:09,162 GIVEN INSTITUTE. 6465 04:09:09,162 --> 04:09:11,898 WHAT I'M INDICATING HERE, WHAT 6466 04:09:11,898 --> 04:09:15,202 I'VE CALLING HUBS, DEFINED AS 6467 04:09:15,202 --> 04:09:18,005 INSTITUTES HAVING MORE THAN FOUR 6468 04:09:18,005 --> 04:09:19,406 FASD-RELATED GRANTS, AND THOSE 6469 04:09:19,406 --> 04:09:20,841 INCLUDE UNIVERSITY OF CALIFORNIA 6470 04:09:20,841 --> 04:09:23,610 SAN DIEGO, WITH FOUR AWARDS, SAN 6471 04:09:23,610 --> 04:09:26,780 DIEGO STATE UNIVERSITY WITH 6472 04:09:26,780 --> 04:09:28,849 FIVE, TEXAS A & M WITH SEVEN, 6473 04:09:28,849 --> 04:09:31,451 UNIVERSITY OF NEW MEXICO WITH 6474 04:09:31,451 --> 04:09:34,187 15, NOW THAT INCLUDES THEIR P50 6475 04:09:34,187 --> 04:09:36,390 CENTER GRANT SO THAT ACCOUNTS 6476 04:09:36,390 --> 04:09:37,557 FOR THE HIGH NUMBER. 6477 04:09:37,557 --> 04:09:40,427 UNIVERSITY OF NORTH CAROLINA 6478 04:09:40,427 --> 04:09:41,194 WITH FIVE, AND BINGHAMTON 6479 04:09:41,194 --> 04:09:44,598 UNIVERSITY IN NEW YORK WITH FIVE 6480 04:09:44,598 --> 04:09:47,668 AS WELL. 6481 04:09:47,668 --> 04:09:50,404 NOW, OF THE 16 NEW AWARDS I 6482 04:09:50,404 --> 04:09:52,139 MENTIONED IN FISCAL YEAR 2023, 6483 04:09:52,139 --> 04:09:54,441 THEY FALL INTO THE FOUR MAIN 6484 04:09:54,441 --> 04:09:55,776 CATEGORIES OF FASD RESEARCH I 6485 04:09:55,776 --> 04:09:57,310 MENTIONED ON MY FIRST SLIDE. 6486 04:09:57,310 --> 04:09:58,612 THIS TABLE WAS JUST AN EXAMPLE 6487 04:09:58,612 --> 04:10:01,348 OF SOME OF THE GRANTS THAT ARE 6488 04:10:01,348 --> 04:10:07,487 LOOKING AT THE AREA OF FASD 6489 04:10:07,487 --> 04:10:09,656 ETIOLOGY, THOSE STUDIES INCLUDE 6490 04:10:09,656 --> 04:10:15,896 GRANTS LOOKING AT THE GENES THAT 6491 04:10:15,896 --> 04:10:18,198 MAY UNDERLIE SUSCEPTIBILITY, THE 6492 04:10:18,198 --> 04:10:19,933 ROLE OF OXIDATIVE STRESS 6493 04:10:19,933 --> 04:10:23,336 RESPONSE IN THE SEVERITY OF 6494 04:10:23,336 --> 04:10:26,506 NEUROLOGICAL DISORDERS, IN 6495 04:10:26,506 --> 04:10:28,575 ADULTS WITH PAE, STUDIES TO LOOK 6496 04:10:28,575 --> 04:10:32,646 AT DNA METHYLATION AND HOW THAT 6497 04:10:32,646 --> 04:10:34,481 MIGHT LINK PRENATAL EXPOSURE TO 6498 04:10:34,481 --> 04:10:36,349 INCREASED RISK FOR DEPRESSION 6499 04:10:36,349 --> 04:10:39,086 LATER IN LIFE. 6500 04:10:39,086 --> 04:10:42,155 AND STUDIES LOOKING AT IMPACT OF 6501 04:10:42,155 --> 04:10:44,524 PRENATAL ALCOHOL EXPOSURE AND 6502 04:10:44,524 --> 04:10:50,230 OPIOID CO-EXPOSURE ON THE 6503 04:10:50,230 --> 04:10:50,897 DEVELOPING BRAIN. 6504 04:10:50,897 --> 04:10:58,338 NOW, IN ITEMS OF -- IN TERMS OF 6505 04:10:58,338 --> 04:11:01,508 INTERVENTIONS WE ARE LOOKING AT 6506 04:11:01,508 --> 04:11:05,679 WAYS WITH THIS AWARD ON HOW 6507 04:11:05,679 --> 04:11:08,949 MUSIC TRAINING MAY MITIGATE SOME 6508 04:11:08,949 --> 04:11:13,553 BEHAVIORAL DEFICITS SEEN IN 6509 04:11:13,553 --> 04:11:15,188 CHILDREN WITH FASD, AN AWARD 6510 04:11:15,188 --> 04:11:17,724 LOOKING TO DEVELOP 6511 04:11:17,724 --> 04:11:18,692 PERSON-CENTERED PLANNING 6512 04:11:18,692 --> 04:11:21,128 INTERVENTION FOR ADOLESCENTS AND 6513 04:11:21,128 --> 04:11:21,895 ADULTS WITH FASD. 6514 04:11:21,895 --> 04:11:26,166 IN THE AREA OF PREVENTION, WE 6515 04:11:26,166 --> 04:11:28,135 HAVE INVESTIGATORS ATTEMPTING TO 6516 04:11:28,135 --> 04:11:32,472 OPTIMIZE A NEW DIGITAL RISK 6517 04:11:32,472 --> 04:11:34,474 INTERVENTION, TAILORED TO NATIVE 6518 04:11:34,474 --> 04:11:37,410 COMMUNITIES, WITH THE HOPE OF 6519 04:11:37,410 --> 04:11:39,079 LOWERING ALCOHOL EXPOSED 6520 04:11:39,079 --> 04:11:41,047 PREGNANCY RATES. 6521 04:11:41,047 --> 04:11:44,351 AS WELL AS FELLOWSHIP LOOKING AT 6522 04:11:44,351 --> 04:11:46,987 CONTRIBUTION OF STRESS, SOCIAL 6523 04:11:46,987 --> 04:11:49,189 SUPPORT AND BRAIN FUNCTION ON 6524 04:11:49,189 --> 04:11:50,157 ALCOHOL MISUSE IN WOMEN. 6525 04:11:50,157 --> 04:11:53,860 I DO WANT TO POINT OUT THAT THE 6526 04:11:53,860 --> 04:11:57,697 FIRST THREE AWARDS HERE USE THE 6527 04:11:57,697 --> 04:11:59,666 R61 GRANT MECHANISM, AND THOSE 6528 04:11:59,666 --> 04:12:01,868 WERE AWARDS THAT WERE SUBMITTED 6529 04:12:01,868 --> 04:12:04,371 IN RESPONSE TO A SPECIFIC NOTICE 6530 04:12:04,371 --> 04:12:05,472 OF FUNDING OPPORTUNITY 6531 04:12:05,472 --> 04:12:07,674 ANNOUNCEMENT THAT NIAAA PUT OUT. 6532 04:12:07,674 --> 04:12:12,946 THAT I'LL MENTION IN A 6533 04:12:12,946 --> 04:12:13,847 SUBSEQUENT SLIDE. 6534 04:12:13,847 --> 04:12:16,116 WE ALSO HAVE STUDIES THAT SPAN 6535 04:12:16,116 --> 04:12:16,683 MULTIPLE AREAS. 6536 04:12:16,683 --> 04:12:21,054 SO, THIS IS AN EXAMPLE OF AN R01 6537 04:12:21,054 --> 04:12:25,458 LOOKING AT BOTH FASD ETIOLOGY 6538 04:12:25,458 --> 04:12:26,059 AND INTERVENTION, AND IN 6539 04:12:26,059 --> 04:12:27,460 PARTICULAR THEY ARE USING 6540 04:12:27,460 --> 04:12:30,797 ADVANCED BRAIN IMAGING TO KIND 6541 04:12:30,797 --> 04:12:33,066 OF UNDERSTAND, TO BETTER 6542 04:12:33,066 --> 04:12:33,600 UNDERSTAND NEUROPROTECTIVE 6543 04:12:33,600 --> 04:12:38,872 EFFECTS OF CHOLINE, IN THIS CASE 6544 04:12:38,872 --> 04:12:40,073 CHOLINE MATERNAL CHOLINE 6545 04:12:40,073 --> 04:12:40,874 SUPPLEMENTATION DURING 6546 04:12:40,874 --> 04:12:45,645 PREGNANCY, HOW THAT MAY PROTECT 6547 04:12:45,645 --> 04:12:46,880 THE DEVELOPING FETUS. 6548 04:12:46,880 --> 04:12:48,849 SO, TO LEARN MORE ABOUT THESE 6549 04:12:48,849 --> 04:12:52,986 AWARDS AND THE MANY OTHERS THAT 6550 04:12:52,986 --> 04:12:55,722 WE FUND I SUGGEST GOING TO THE 6551 04:12:55,722 --> 04:12:59,025 NIH REPORTER WEBSITE AND 6552 04:12:59,025 --> 04:13:05,565 SELECTING FASD UNDER THE NIH 6553 04:13:05,565 --> 04:13:06,132 SPENDING CATEGORY PULLDOWN. 6554 04:13:06,132 --> 04:13:08,001 SO WE HAVE MADE PROGRESS IN 6555 04:13:08,001 --> 04:13:09,970 AREAS, I THINK WE ALSO 6556 04:13:09,970 --> 04:13:10,937 UNDERSTAND THAT CHALLENGES 6557 04:13:10,937 --> 04:13:13,907 REMAIN IN THIS FIELD. 6558 04:13:13,907 --> 04:13:16,743 AND SO NIAAA BELIEVES MORE 6559 04:13:16,743 --> 04:13:18,478 RESEARCH STUDIES ARE NEEDED IN 6560 04:13:18,478 --> 04:13:21,214 THE FOLLOWING AREAS, TO PREVENT 6561 04:13:21,214 --> 04:13:22,849 ALCOHOL EXPOSED PREGNANCIES, TO 6562 04:13:22,849 --> 04:13:26,353 IDENTIFY EARLIER NEWBORNS AND 6563 04:13:26,353 --> 04:13:28,421 CHILDREN AFFECTED BY PAE TO 6564 04:13:28,421 --> 04:13:31,858 DEVELOP AND BETTER IMPLEMENT 6565 04:13:31,858 --> 04:13:33,126 INTERVENTIONS ACROSS THE 6566 04:13:33,126 --> 04:13:35,729 LIFESPAN, TO BETTER UNDERSTAND 6567 04:13:35,729 --> 04:13:37,597 IMPACT OF PAE ON RISK FOR 6568 04:13:37,597 --> 04:13:41,134 CHRONIC DISEASES LATER IN LIFE, 6569 04:13:41,134 --> 04:13:43,637 STUDIES TO REDUCE FASD-RELATED 6570 04:13:43,637 --> 04:13:44,638 SIGMA TO IMPROVE PREVENTION 6571 04:13:44,638 --> 04:13:46,706 EFFORTS, AS WELL AS ADDRESSING 6572 04:13:46,706 --> 04:13:48,475 BARRIERS TO IMPROVE AWARENESS OF 6573 04:13:48,475 --> 04:13:51,778 FASD AS A DEVELOPMENTAL 6574 04:13:51,778 --> 04:13:52,045 DISORDER. 6575 04:13:52,045 --> 04:13:53,613 FINALLY, TO BETTER UNDERSTAND 6576 04:13:53,613 --> 04:13:57,117 IMPACT OF ALCOHOL ON PLACENTA 6577 04:13:57,117 --> 04:14:04,557 AND GUT MICROBIOME FUNCTION. 6578 04:14:04,557 --> 04:14:06,860 NIAAA HAS PUBLISHED OR 6579 04:14:06,860 --> 04:14:09,596 PARTICIPATES IN SEVERAL NOTICES 6580 04:14:09,596 --> 04:14:10,764 OF FUNDING OPPORTUNITIES, TO 6581 04:14:10,764 --> 04:14:13,099 SOLICIT RESEARCH IN THE AREA OF 6582 04:14:13,099 --> 04:14:15,268 PREGNANCY AND FASD, FIRST ONE 6583 04:14:15,268 --> 04:14:18,004 LISTED HERE IN THE TABLE WAS ONE 6584 04:14:18,004 --> 04:14:21,841 I MENTIONED TWO SLIDES EARLIER, 6585 04:14:21,841 --> 04:14:23,710 WAS A SOLICITATION WE PUBLISHED 6586 04:14:23,710 --> 04:14:26,646 LOOKING FOR NOVEL PREVENTION AND 6587 04:14:26,646 --> 04:14:27,647 INTERVENTION APPROACHES, FOR 6588 04:14:27,647 --> 04:14:29,482 FASD ACROSS THE LIFESPAN. 6589 04:14:29,482 --> 04:14:32,352 AND I'M HAPPY TO REPORT THAT WE 6590 04:14:32,352 --> 04:14:35,655 WERE ABLE TO RENEW THIS SERIES 6591 04:14:35,655 --> 04:14:36,389 OF FUNDING OPPORTUNITIES 6592 04:14:36,389 --> 04:14:41,127 ANNOUNCEMENTS FOR ANOTHER THREE 6593 04:14:41,127 --> 04:14:42,762 YEARS. 6594 04:14:42,762 --> 04:14:44,497 WE PARTICIPATE LOOKING AT 6595 04:14:44,497 --> 04:14:46,166 EMERGING ISSUES OF COVID AS 6596 04:14:46,166 --> 04:14:48,134 RELATES TO THE HEALTH AND 6597 04:14:48,134 --> 04:14:49,102 WELL-BEING OF WOMEN, CHILDREN, 6598 04:14:49,102 --> 04:14:51,938 AND INDIVIDUALS WITH PHYSICAL 6599 04:14:51,938 --> 04:14:54,040 AND INTELLECTUAL DISABILITIES. 6600 04:14:54,040 --> 04:14:55,709 A NOTICE TO BETTER IMPLEMENT 6601 04:14:55,709 --> 04:14:56,643 SCREENING, BRIEF INTERVENTION 6602 04:14:56,643 --> 04:14:59,579 AND REFERRAL TO TREATMENT AND 6603 04:14:59,579 --> 04:15:01,581 PREVENTION FOR ALCOHOL, TOBACCO, 6604 04:15:01,581 --> 04:15:05,285 OTHER DRUG USE IN ADULTS WITH 6605 04:15:05,285 --> 04:15:07,053 HEALTH DISPARITIES. 6606 04:15:07,053 --> 04:15:10,590 A NOTICE TO ADDRESS GAPS IN 6607 04:15:10,590 --> 04:15:11,358 EVIDENCE-BASED SCREENING, AND 6608 04:15:11,358 --> 04:15:12,225 THAT INCLUDE SCREENING FOR 6609 04:15:12,225 --> 04:15:15,395 ALCOHOL USE IN PREGNANCY AS WELL 6610 04:15:15,395 --> 04:15:18,565 AS SCREENING FOR FASD, AND A 6611 04:15:18,565 --> 04:15:21,935 NOTICE ON SECONDARY DATA 6612 04:15:21,935 --> 04:15:23,103 ANALYSES FOR EXISTING ALCOHOL 6613 04:15:23,103 --> 04:15:23,436 DATASETS. 6614 04:15:23,436 --> 04:15:26,973 IF YOU WANT TO LEARN MORE, YOU 6615 04:15:26,973 --> 04:15:28,308 CAN VISIT GRANTS.NIH.GOV FOR 6616 04:15:28,308 --> 04:15:31,144 DETAILS. 6617 04:15:31,144 --> 04:15:32,545 6618 04:15:32,545 --> 04:15:35,949 I WANT TO MENTION NIAAA HAS 6619 04:15:35,949 --> 04:15:37,050 SEVERAL RESOURCES RELATED TO 6620 04:15:37,050 --> 04:15:42,722 ALCOHOL AND PREGNANCY ON OUR 6621 04:15:42,722 --> 04:15:46,026 WEBSITES, IN 2023 WE UPDATED OUR 6622 04:15:46,026 --> 04:15:48,962 FACT SHEET ON FASD, AS WELL AS 6623 04:15:48,962 --> 04:15:52,265 RELEASED A NEW VERSION OF THE 6624 04:15:52,265 --> 04:15:52,966 BROCHURE ALCOHOL AND YOUR 6625 04:15:52,966 --> 04:15:54,467 PREGNANCY WHICH IS A GUIDE FOR 6626 04:15:54,467 --> 04:15:58,071 EXPECTING MOTHERS TO GET ANSWERS 6627 04:15:58,071 --> 04:15:59,906 TO FACS AROUND ALCOHOL USE 6628 04:15:59,906 --> 04:16:02,442 DURING PREGNANCY AND HAVE 6629 04:16:02,442 --> 04:16:05,011 RECENTLY PUBLISHED A SHORT-TAKES 6630 04:16:05,011 --> 04:16:08,348 WITH NIAAA VIDEO TO HELP EXPLAIN 6631 04:16:08,348 --> 04:16:09,549 WHAT IS FASD. 6632 04:16:09,549 --> 04:16:10,984 THESE AND OTHER RESOURCES CAN BE 6633 04:16:10,984 --> 04:16:16,222 FOUND AT THE URL LISTED ON THE 6634 04:16:16,222 --> 04:16:16,723 SLIDE. 6635 04:16:16,723 --> 04:16:19,959 IN 2023 WE LAUNCHED A SERIES OF 6636 04:16:19,959 --> 04:16:22,028 REVIEW ARTICLES, PUBLISHED IN 6637 04:16:22,028 --> 04:16:23,129 THE ALCOHOL RESEARCH CURRENT 6638 04:16:23,129 --> 04:16:29,135 REVIEWS, THIS WAS A SERIES TOPIC 6639 04:16:29,135 --> 04:16:30,670 SPECIFICALLY ON FASD, TOPICS 6640 04:16:30,670 --> 04:16:33,173 INCLUDED THE IMPACT OF LOW AND 6641 04:16:33,173 --> 04:16:36,376 MODERATE PRENATAL ALCOHOL 6642 04:16:36,376 --> 04:16:38,978 EXPOSURE ON NEURODEVELOPMENTAL 6643 04:16:38,978 --> 04:16:40,080 OUTCOMES, BY GRETCHEN BANDOLI 6644 04:16:40,080 --> 04:16:41,948 AND COLLEAGUES, REVIEW ON 6645 04:16:41,948 --> 04:16:45,418 BIOMARKERS AND SCREENING TOOLS 6646 04:16:45,418 --> 04:16:49,355 TO IDENTIFY PAE BY JULIE KABLE 6647 04:16:49,355 --> 04:16:52,092 AND OUR OWN DR. JONES, AND 6648 04:16:52,092 --> 04:16:53,326 PREVENTION REVIEW ON REDUCING 6649 04:16:53,326 --> 04:16:55,495 PAE AND INCIDENCE OF FASD BY 6650 04:16:55,495 --> 04:16:56,162 GRACE CHANG. 6651 04:16:56,162 --> 04:16:58,698 WE HOPE TO ADD TWO MORE REVIEW 6652 04:16:58,698 --> 04:17:01,568 ARTICLES THIS YEAR, AND ALL THE 6653 04:17:01,568 --> 04:17:06,806 ARTICLES ARE FREELY AVAILABLE AT 6654 04:17:06,806 --> 04:17:08,341 THE URL ON THE SLIDE. 6655 04:17:08,341 --> 04:17:11,077 I WANT TO MENTION NIAAA DOES 6656 04:17:11,077 --> 04:17:18,017 PARTICIPATE IN MANY NIH-WIDE 6657 04:17:18,017 --> 04:17:20,053 PEDIATRIC INITIATIVES INCLUDING 6658 04:17:20,053 --> 04:17:24,224 BRAIN COGNITIVE STUDY, 6659 04:17:24,224 --> 04:17:25,425 GABRIELLA MILLER PROGRAM, ECHO 6660 04:17:25,425 --> 04:17:27,961 PROGRAM, AS WELL AS HEALTHY 6661 04:17:27,961 --> 04:17:28,962 BRAIN AND CHILD DEVELOPMENT 6662 04:17:28,962 --> 04:17:33,133 STUDY WHICH YOU'LL HEAR MORE 6663 04:17:33,133 --> 04:17:34,400 ABOUT IN NIDA'S UPDATE. 6664 04:17:34,400 --> 04:17:36,603 WITH THAT I THANK YOU FOR YOUR 6665 04:17:36,603 --> 04:17:38,138 ATTENTION. 6666 04:17:38,138 --> 04:17:39,272 MORE INFO ON OUR RESEARCH 6667 04:17:39,272 --> 04:17:46,779 PROGRAM CAN BE FOUND ON OUR 6668 04:17:46,779 --> 04:17:47,013 WEBSITE. 6669 04:17:47,013 --> 04:17:47,347 THANK YOU. 6670 04:17:47,347 --> 04:17:50,817 >> THANK YOU VERY MUCH. 6671 04:17:50,817 --> 04:18:01,361 NEXT PRESENTATION IS FROM NIMH. 6672 04:18:02,729 --> 04:18:03,530 >> THANK YOU. 6673 04:18:03,530 --> 04:18:04,731 THANK YOU FOR THE OPPORTUNITY TO 6674 04:18:04,731 --> 04:18:09,302 SPEAK AND JOIN THIS MEETING 6675 04:18:09,302 --> 04:18:09,502 TODAY. 6676 04:18:09,502 --> 04:18:11,905 I'M CHRIS SARAMPOTE, DIVISION OF 6677 04:18:11,905 --> 04:18:12,438 TRANSLATIONAL RESEARCH AT 6678 04:18:12,438 --> 04:18:13,039 NATIONAL INSTITUTE OF MENTAL 6679 04:18:13,039 --> 04:18:13,439 HEALTH. 6680 04:18:13,439 --> 04:18:23,016 I WANT TO ACKNOWLEDGE MY 6681 04:18:23,016 --> 04:18:24,851 COLLEAGUE DR. JULIE ZEHR, RISK 6682 04:18:24,851 --> 04:18:27,787 AND RESILIENCE IN CHILDREN, WE 6683 04:18:27,787 --> 04:18:29,455 SPEND TIME AFTER MEETINGS TODAY 6684 04:18:29,455 --> 04:18:31,191 THINKING HOW WE MIGHT PUT OUR 6685 04:18:31,191 --> 04:18:34,160 HEADS TOGETHER AND BRING NIMH'S 6686 04:18:34,160 --> 04:18:35,461 RESOURCES TO THE TABLE TO HELP 6687 04:18:35,461 --> 04:18:36,496 ANSWER QUESTIONS THAT ARE 6688 04:18:36,496 --> 04:18:39,432 RELEVANT TO BOTH MENTAL HEALTH 6689 04:18:39,432 --> 04:18:40,700 AND ALSO TO FASD. 6690 04:18:40,700 --> 04:18:43,036 I ALSO WANT TO ACKNOWLEDGE MY 6691 04:18:43,036 --> 04:18:45,738 COLLEAGUES HERE TODAY AT OTHER 6692 04:18:45,738 --> 04:18:46,773 INSTITUTES, AND OTHER AGENCIES, 6693 04:18:46,773 --> 04:18:49,008 WHO DO A LOT OF HEAVY LIFTING 6694 04:18:49,008 --> 04:18:51,444 WHEN IT COMES TO RESEARCH THAT 6695 04:18:51,444 --> 04:18:54,380 RELATES TO MENTAL ILLNESS AND SO 6696 04:18:54,380 --> 04:18:55,448 IT'S WITH MUCH APPRECIATION THAT 6697 04:18:55,448 --> 04:18:56,783 I HAVE A CHANCE TO BE IN THE 6698 04:18:56,783 --> 04:18:57,917 ROOM WITH YOU AND HEAR ABOUT 6699 04:18:57,917 --> 04:18:58,551 YOUR WORK. 6700 04:18:58,551 --> 04:19:04,190 SO THANK YOU FOR SHARING TODAY. 6701 04:19:04,190 --> 04:19:06,292 THIS IS KNOWN TO MANY PEOPLE, 6702 04:19:06,292 --> 04:19:10,730 NIMH IS LEAD FEDERAL AGENCY FOR 6703 04:19:10,730 --> 04:19:11,731 RESEARCH ON MENTAL DISORDERS 6704 04:19:11,731 --> 04:19:13,366 SPANNING THE PIPELINE FROM BASIC 6705 04:19:13,366 --> 04:19:17,337 STUDIES OF MECHANISMS, 6706 04:19:17,337 --> 04:19:22,242 TRAJECTORIES OF MENTAL ILLNESS, 6707 04:19:22,242 --> 04:19:25,078 INTERVENTION DEVELOPMENT, IMPACT 6708 04:19:25,078 --> 04:19:27,213 OF INTERVENTIONS ON ALLEVIATING 6709 04:19:27,213 --> 04:19:36,155 THE BURDEN OF MENTAL ILLNESS, 6710 04:19:36,155 --> 04:19:37,857 COMMITTED TO DELIVERY MODELS. 6711 04:19:37,857 --> 04:19:38,725 INDEED PREVENTION AND TREATMENT 6712 04:19:38,725 --> 04:19:40,693 OF MENTAL ILLNESS IS PART OF THE 6713 04:19:40,693 --> 04:19:43,563 CORE MISSION OF NIMH, NEED FOR 6714 04:19:43,563 --> 04:19:44,330 EFFECT ELIMINATED CARE REMAINS 6715 04:19:44,330 --> 04:19:44,597 CRITICAL. 6716 04:19:44,597 --> 04:19:46,399 UNFORTUNATELY THERE ARE A NUMBER 6717 04:19:46,399 --> 04:19:48,268 OF FOLKS FOR WHICH SERVICES 6718 04:19:48,268 --> 04:19:51,671 DON'T REACH AND MANY FOLKS LEFT 6719 04:19:51,671 --> 04:19:54,507 OUT OF EFFECTIVE TREATMENT AND 6720 04:19:54,507 --> 04:19:56,242 AS WE'VE HEARD INDIVIDUALS WITH 6721 04:19:56,242 --> 04:19:59,545 FASD MAY BE AT PARTICULAR RISK 6722 04:19:59,545 --> 04:20:00,313 AS WELL. 6723 04:20:00,313 --> 04:20:02,081 THESE HAVE BEEN EXACERBATED BY 6724 04:20:02,081 --> 04:20:04,284 NUMEROUS FACTORS INCLUDING 6725 04:20:04,284 --> 04:20:06,219 PANDEMIC, DISPARITIES OF MENTAL 6726 04:20:06,219 --> 04:20:07,754 HEALTH CARE AND GROUPS LIKE FASD 6727 04:20:07,754 --> 04:20:10,356 WHO MAY BE PARTICULARLY IMPACTED 6728 04:20:10,356 --> 04:20:11,991 BY MENTAL ILLNESS. 6729 04:20:11,991 --> 04:20:13,760 INDIVIDUALS WITH FASD ARE 6730 04:20:13,760 --> 04:20:19,565 INCREASED RISK FOR PSYCHOLOGICAL 6731 04:20:19,565 --> 04:20:21,401 DISORDERS, SUCH AS ADHD, 6732 04:20:21,401 --> 04:20:25,371 INCREASED RISK OF SUICIDAL 6733 04:20:25,371 --> 04:20:25,672 BEHAVIOR. 6734 04:20:25,672 --> 04:20:26,606 PRENATAL ALCOHOL EXPOSURE IS 6735 04:20:26,606 --> 04:20:28,308 ASSOCIATED WITH NEGATIVE MENTAL 6736 04:20:28,308 --> 04:20:29,075 HEALTH OUTCOMES IN CHILDREN, 6737 04:20:29,075 --> 04:20:30,276 PSYCHIATRIC SYMPTOMS ARE 6738 04:20:30,276 --> 04:20:31,711 ASSOCIATED WITH PRENATAL ALCOHOL 6739 04:20:31,711 --> 04:20:33,980 USE SUCH AS EMOTION 6740 04:20:33,980 --> 04:20:35,248 DYSREGULATION, IMPULSIVITY, 6741 04:20:35,248 --> 04:20:36,282 IMPAIRED EXECUTIVE FUNCTIONING, 6742 04:20:36,282 --> 04:20:38,718 AND MAY RESPOND DIFFERENTLY TO 6743 04:20:38,718 --> 04:20:39,786 STANDARD PSYCHIATRIC TREATMENTS, 6744 04:20:39,786 --> 04:20:42,188 INDEED MANY OF THESE SYMPTOMS 6745 04:20:42,188 --> 04:20:46,926 THAT I JUST STATED ARE DEFINED, 6746 04:20:46,926 --> 04:20:48,895 BEHAVIORAL PHENOTYPE OF FASD. 6747 04:20:48,895 --> 04:20:49,962 UNDERSTANDING THESE 6748 04:20:49,962 --> 04:20:51,331 RELATIONSHIPS BETWEEN ALCOHOL 6749 04:20:51,331 --> 04:20:52,732 EXPOSURE, BEHAVIOR, PSYCHIATRIC 6750 04:20:52,732 --> 04:20:53,933 SYMPTOMS AND OTHER VARIABLES 6751 04:20:53,933 --> 04:20:55,802 LIKE ENVIRONMENT WE CAN BETTER 6752 04:20:55,802 --> 04:20:56,803 UNDERSTAND DEVELOPMENTAL 6753 04:20:56,803 --> 04:20:58,204 TRAJECTORIES FOR CHILDREN WITH 6754 04:20:58,204 --> 04:21:00,306 FASD, AND DETERMINE BETTER HOW 6755 04:21:00,306 --> 04:21:02,275 AND WHEN TO INTERVENE TO PROMOTE 6756 04:21:02,275 --> 04:21:02,608 HEALTH. 6757 04:21:02,608 --> 04:21:04,243 MORE WORK IS NEEDED TO BETTER 6758 04:21:04,243 --> 04:21:06,212 UNDERSTAND HOW EXISTING MENTAL 6759 04:21:06,212 --> 04:21:07,847 HEALTH SERVICES ARE UTILIZED BY 6760 04:21:07,847 --> 04:21:12,418 AND BENEFIT PEOPLE WITH FASD, 6761 04:21:12,418 --> 04:21:14,520 PUBLIC PARTNERS MADE IT CLEAR 6762 04:21:14,520 --> 04:21:17,590 OPTIONS WERE LIMITED, PROVIDERS 6763 04:21:17,590 --> 04:21:20,626 UNDERTRAINING IN FASD AND NEEDS 6764 04:21:20,626 --> 04:21:21,627 CHANGES SIGNIFICANTLY OVER THE 6765 04:21:21,627 --> 04:21:21,994 LIFESPAN. 6766 04:21:21,994 --> 04:21:23,930 A NUMBER OF FOLKS SIMILARLY 6767 04:21:23,930 --> 04:21:25,798 AREN'T HEARD, MAYBE YOU'RE 6768 04:21:25,798 --> 04:21:28,067 LUMPED INTO OTHER GROUPS, GROUPS 6769 04:21:28,067 --> 04:21:29,268 WITH DEVELOPMENTAL DISORDERS, 6770 04:21:29,268 --> 04:21:31,904 WITH ADHD, THAT AREN'T TRULY 6771 04:21:31,904 --> 04:21:34,874 MEETING YOUR TRUE BEHAVIORAL AND 6772 04:21:34,874 --> 04:21:35,708 MENTAL HEALTH NEEDS. 6773 04:21:35,708 --> 04:21:37,677 A COUPLE THINGS I HEARD EARLIER 6774 04:21:37,677 --> 04:21:38,678 TODAY THAT ARE IMPORTANT, 6775 04:21:38,678 --> 04:21:40,880 PARTICULARLY FOR US IN NIMH TO 6776 04:21:40,880 --> 04:21:44,584 UNDERSTAND, THAT IS THE IDEA 6777 04:21:44,584 --> 04:21:47,987 THAT FASD PROMOTE FOR MOST IS AN 6778 04:21:47,987 --> 04:21:50,390 INVISIBLE DISORDER LIKE MANY 6779 04:21:50,390 --> 04:21:52,258 MENTAL DISORDERS, EVEN IN 6780 04:21:52,258 --> 04:21:54,427 RESEARCH CHILDREN WITH FASD ARE 6781 04:21:54,427 --> 04:21:56,729 INVISIBLE, EITHER SCREENED OUT 6782 04:21:56,729 --> 04:22:00,233 OF THE STUDIES OR THEY ARE 6783 04:22:00,233 --> 04:22:03,069 INCLUDED IN STUDIES BUT MAY BE 6784 04:22:03,069 --> 04:22:03,770 MASQUERADING AS DIFFERENT 6785 04:22:03,770 --> 04:22:07,273 DISORDER AND WE'RE NOT TRULY 6786 04:22:07,273 --> 04:22:10,777 UNDERSTANDING THE UNIQUE 6787 04:22:10,777 --> 04:22:11,978 ETIOLOGICAL AND TRAJECTORY 6788 04:22:11,978 --> 04:22:13,413 MECHANISTIC TRAJECTORY AND HOW 6789 04:22:13,413 --> 04:22:14,147 THEY ARE IMPORTANT. 6790 04:22:14,147 --> 04:22:19,218 THE OTHER THING I WOULD ADD TO 6791 04:22:19,218 --> 04:22:21,754 THIS IDEA THAT THE CHALLENGES 6792 04:22:21,754 --> 04:22:22,488 REQUIRE EFFORTS FROM MANY. 6793 04:22:22,488 --> 04:22:24,223 MANY OF MIGHT HAVE COLLEAGUES 6794 04:22:24,223 --> 04:22:25,591 ARE CARRYING A LOT OF HEAVY 6795 04:22:25,591 --> 04:22:31,364 LIFTING, DOING A LOT OF HEAVY 6796 04:22:31,364 --> 04:22:34,534 LIFTING, SO I REALLY ICCFASD AND 6797 04:22:34,534 --> 04:22:38,938 LOOKING FORWARD TO PARTNER AND 6798 04:22:38,938 --> 04:22:40,006 ADDRESS THIS PROBLEM. 6799 04:22:40,006 --> 04:22:43,309 NIMH CURRENTLY DOES NOT FUND 6800 04:22:43,309 --> 04:22:48,147 RESEARCH PROJECT GRANTS ON 6801 04:22:48,147 --> 04:22:51,083 MENTAL ILLNESS BUT WE DO 6802 04:22:51,083 --> 04:22:51,384 PARTNER. 6803 04:22:51,384 --> 04:22:53,619 AS BILL MENTIONED, DESCRIBED IN 6804 04:22:53,619 --> 04:22:55,688 MORE DEPTH BY NIDA, HEALTHY 6805 04:22:55,688 --> 04:22:56,789 BRAIN AND CHILD DEVELOPMENT 6806 04:22:56,789 --> 04:22:58,224 STUDY FOR WHICH NIMH DOES 6807 04:22:58,224 --> 04:22:59,425 PARTICIPATE AS WELL. 6808 04:22:59,425 --> 04:23:00,293 AGAIN, THANK YOU FOR THE 6809 04:23:00,293 --> 04:23:02,361 OPPORTUNITY TO PRESENT AND LEARN 6810 04:23:02,361 --> 04:23:04,330 FROM YOU TODAY, I LOOK FORWARD 6811 04:23:04,330 --> 04:23:11,003 TO HEARING MORE. 6812 04:23:11,003 --> 04:23:12,572 THANK YOU. 6813 04:23:12,572 --> 04:23:14,740 >> THANK YOU, CHRIS. 6814 04:23:14,740 --> 04:23:16,509 NOW PRESENTATIONS, TWO RECORDED 6815 04:23:16,509 --> 04:23:19,245 PRESENTATIONS BY MEMBERS WHO ARE 6816 04:23:19,245 --> 04:23:24,517 ONLINE ON ZOOM NOW, WE'LL SEE 6817 04:23:24,517 --> 04:23:25,418 THESE PRESENTATIONS, PLEASE PUT 6818 04:23:25,418 --> 04:23:26,819 IT ON. 6819 04:23:26,819 --> 04:23:37,363 THEN WE'LL HAVE DISCUSSION AFTER 6820 04:23:39,799 --> 04:23:40,066 PRESENTATIONS. 6821 04:23:40,066 --> 04:23:43,569 >> I'M JANANI PRABHAKAR FROM 6822 04:23:43,569 --> 04:23:43,769 NIDA. 6823 04:23:43,769 --> 04:23:45,972 I AM THRILLED TO BE HERE WITH 6824 04:23:45,972 --> 04:23:47,173 YOU TODAY, VIRTUALLY, I'M SORRY 6825 04:23:47,173 --> 04:23:48,841 I'M NOT ABLE TO THERE BE IN 6826 04:23:48,841 --> 04:23:50,776 PERSON BUT HOPEFULLY I WILL BE 6827 04:23:50,776 --> 04:23:52,211 IN ABLE TO NEXT TIME. 6828 04:23:52,211 --> 04:23:57,850 I'M HAPPY TO PROVIDE A REPORT OF 6829 04:23:57,850 --> 04:23:59,218 NIDA'S ACTIVITIES IN 2023. 6830 04:23:59,218 --> 04:24:04,590 I WILL START WITH AN UPDATE OF 6831 04:24:04,590 --> 04:24:07,126 OUR HBCD STUDY, MANY OF YOU HERE 6832 04:24:07,126 --> 04:24:09,228 HAVE LIKELY HEARD ME TALK ABOUT 6833 04:24:09,228 --> 04:24:10,196 THIS STUDY. 6834 04:24:10,196 --> 04:24:14,700 I'M THE PROGRAM OFFICER FOR 6835 04:24:14,700 --> 04:24:15,134 HBCD. 6836 04:24:15,134 --> 04:24:17,670 REMINDER, PHASE 2 WAS LAUNCHED 6837 04:24:17,670 --> 04:24:21,140 IN 2021, WITH GOAL TO RECRUIT 6838 04:24:21,140 --> 04:24:23,442 APPROXIMATELY 7,200 PREGNANT 6839 04:24:23,442 --> 04:24:24,644 PERSONS IN SECOND TRIMESTER, 6840 04:24:24,644 --> 04:24:28,047 FOLLOW THEM AND THEIR CHILD FOR 6841 04:24:28,047 --> 04:24:29,248 TEN YEARS. 6842 04:24:29,248 --> 04:24:34,153 OBJECTIVE IS TO ESTABLISH 6843 04:24:34,153 --> 04:24:34,921 NEURODEVELOPMENTAL TRAJECTORIES, 6844 04:24:34,921 --> 04:24:36,789 DETERMINE HOW SUBSTANCE EXPOSURE 6845 04:24:36,789 --> 04:24:39,759 AND OTHER ENVIRONMENTAL FACTORS 6846 04:24:39,759 --> 04:24:40,626 AFFECT THOSE TRAJECTORIES. 6847 04:24:40,626 --> 04:24:44,564 ON THE LEFT YOU'LL SEE OUR 27 6848 04:24:44,564 --> 04:24:48,200 RESEARCH SITES, WITH LOCATIONS 6849 04:24:48,200 --> 04:24:48,935 OF OUR ADMINISTRATIVE 6850 04:24:48,935 --> 04:24:50,736 COORDINATING CENTER AND DATA 6851 04:24:50,736 --> 04:24:52,538 COORDINATING CENTER THAT MAKE UP 6852 04:24:52,538 --> 04:24:55,107 THE CONSORTIUM. 6853 04:24:55,107 --> 04:24:57,610 ON THE RIGHT IS SAMPLING DESIGN, 6854 04:24:57,610 --> 04:24:59,912 50% IS FROM THE GENERAL 6855 04:24:59,912 --> 04:25:01,447 POPULATION OF BIRTHING WOMEN IN 6856 04:25:01,447 --> 04:25:02,648 THE U.S. 6857 04:25:02,648 --> 04:25:07,153 WHICH WILL ALLOW US TO CHART 6858 04:25:07,153 --> 04:25:08,154 NEURODEVELOPMENTAL TRAJECTORIES. 6859 04:25:08,154 --> 04:25:11,424 A KEY ASPECT OF THE STUDY IS TO 6860 04:25:11,424 --> 04:25:13,359 UNDERSTAND ROLE OF SUBSTANCE USE 6861 04:25:13,359 --> 04:25:17,396 EXPOSURE IN NEURODEVELOPMENT, 6862 04:25:17,396 --> 04:25:18,631 25% WILL REFLECT THOSE WHO HAVE 6863 04:25:18,631 --> 04:25:20,633 REPORT OR HAVE BIOMARKERS OF 6864 04:25:20,633 --> 04:25:23,569 SUBSTANCE USE DURING PREGNANCY. 6865 04:25:23,569 --> 04:25:24,971 ANOTHER 25% WILL REFLECT WOMEN 6866 04:25:24,971 --> 04:25:30,242 SIMILAR TO THOSE WHO USE 6867 04:25:30,242 --> 04:25:31,877 SUBSTANCES DURING PREGNANCY BUT 6868 04:25:31,877 --> 04:25:33,613 IN ORDER TO BALANCE POTENTIAL 6869 04:25:33,613 --> 04:25:35,247 CONFOUNDERS AND ANSWER QUESTIONS 6870 04:25:35,247 --> 04:25:37,450 ABOUT THE INFLUENCE OF OTHER 6871 04:25:37,450 --> 04:25:42,855 TYPES OF EXPOSURES ON 6872 04:25:42,855 --> 04:25:43,422 DEVELOPMENT. 6873 04:25:43,422 --> 04:25:45,157 I APOLOGIZE THAT MY HEAD BLOCKS 6874 04:25:45,157 --> 04:25:45,791 OFF 25%. 6875 04:25:45,791 --> 04:25:47,460 SLIDES WILL BE SHARED SO PLEASE 6876 04:25:47,460 --> 04:25:55,735 TAKE A LOOK WHEN YOU HAVE THEM. 6877 04:25:55,735 --> 04:25:57,069 WE'VE ESTABLISHED TARGETS BASED 6878 04:25:57,069 --> 04:25:59,805 ON CHARACTERISTICS AROUND THE 6879 04:25:59,805 --> 04:26:00,606 CIRCLE HERE, BALANCED TO BE 6880 04:26:00,606 --> 04:26:01,941 REPRESENTATIVE TO THE U.S. 6881 04:26:01,941 --> 04:26:04,543 POPULATION OF BIRTHING WOMEN. 6882 04:26:04,543 --> 04:26:11,317 AND ON SITE-SPECIFIC CATCHMENT 6883 04:26:11,317 --> 04:26:12,218 AREAS. 6884 04:26:12,218 --> 04:26:14,920 I'VE OUTLINED GENERAL TIMELINE 6885 04:26:14,920 --> 04:26:16,789 FROM ENROLLMENT TO AGE 4, FIVE 6886 04:26:16,789 --> 04:26:20,726 IN-PERSON VISITS OVER FOUR 6887 04:26:20,726 --> 04:26:23,129 YEARS, THREE REMOTE 6888 04:26:23,129 --> 04:26:25,297 OPPORTUNITIES TO PROVIDE 6889 04:26:25,297 --> 04:26:27,066 ADDITIONAL DATA. 6890 04:26:27,066 --> 04:26:29,335 MUCH ATTENTION PAID TO WOMEN 6891 04:26:29,335 --> 04:26:30,236 LIMITING PARTICIPANT BURDEN 6892 04:26:30,236 --> 04:26:31,437 WHILE STILL AIMING TO COLLECT 6893 04:26:31,437 --> 04:26:32,304 RICH INFORMATION. 6894 04:26:32,304 --> 04:26:34,273 YOU'LL SEE DOMAINS OF INTEREST 6895 04:26:34,273 --> 04:26:36,676 LISTED OVER HERE, AND WHEN THEY 6896 04:26:36,676 --> 04:26:41,847 OCCUR AT EACH OF OUR DIFFERENT 6897 04:26:41,847 --> 04:26:43,049 STUDY VISITS. 6898 04:26:43,049 --> 04:26:45,251 STUDY BEGAN ENROLLMENT IN JULY 6899 04:26:45,251 --> 04:26:48,621 2023, AND WE'RE WELL ON OUR WAY 6900 04:26:48,621 --> 04:26:49,855 TOWARD OUR ENROLLMENT GOALS, IN 6901 04:26:49,855 --> 04:26:52,825 TERMS OF OUR TOTAL ENROLLMENT. 6902 04:26:52,825 --> 04:26:55,528 WE'RE MONITORING SITE PROGRESS 6903 04:26:55,528 --> 04:26:57,596 IN COLLABORATION WITH OUR 6904 04:26:57,596 --> 04:26:59,031 ADMINISTRATIVE COORDINATING 6905 04:26:59,031 --> 04:27:01,333 CENTERS, DASHBOARDS SET UP, SOME 6906 04:27:01,333 --> 04:27:04,303 IN PROGRESS STILL, BUT THAT WILL 6907 04:27:04,303 --> 04:27:10,076 ALLOW US TO LOOK AT SITE 6908 04:27:10,076 --> 04:27:11,610 SPECIFIC PROGRESS, WHICH 6909 04:27:11,610 --> 04:27:15,815 INCLUDES SUBSTANCE USE IN THE 6910 04:27:15,815 --> 04:27:17,116 STUDY IN BIRTHING WOMEN. 6911 04:27:17,116 --> 04:27:19,285 WE'RE FOLLOWING THIS CLOSELY AS 6912 04:27:19,285 --> 04:27:22,488 YOU CAN SEE, SOME DATA HERE, SO 6913 04:27:22,488 --> 04:27:24,023 WHILE WE'RE SEEING RELATIVELY 6914 04:27:24,023 --> 04:27:26,192 LOW LEVELS OF OPIOID USE, SO 6915 04:27:26,192 --> 04:27:28,694 FAR, YOU'LL SEE WE HAVE FAIRLY 6916 04:27:28,694 --> 04:27:30,463 SUBSTANTIAL NUMBER OF PREGNANT 6917 04:27:30,463 --> 04:27:35,501 PERSONS WHO USE ALCOHOL ON ITS 6918 04:27:35,501 --> 04:27:37,570 OWN AND CO-USE. 6919 04:27:37,570 --> 04:27:39,205 THESE FIGURES REFLECT DATA FROM 6920 04:27:39,205 --> 04:27:43,142 BLOODSPOT CARDS ON THE LEFT. 6921 04:27:43,142 --> 04:27:44,343 TIMELINE ON THE BOTTOM RIGHT 6922 04:27:44,343 --> 04:27:45,678 OVER HERE. 6923 04:27:45,678 --> 04:27:47,613 WE HOPE TO TRIANGULATE METRICS, 6924 04:27:47,613 --> 04:27:49,048 REACHING SUBSTANCE USE GOALS 6925 04:27:49,048 --> 04:27:52,718 THROUGH SELF-REPORT AND BY 6926 04:27:52,718 --> 04:27:54,653 SPECIMEN COLLECTION DURING 6927 04:27:54,653 --> 04:27:55,321 PREGNANCY. 6928 04:27:55,321 --> 04:27:56,555 IN ADDITION, I WANT TO HIGHLIGHT 6929 04:27:56,555 --> 04:27:58,724 SEVERAL OTHER INITIATIVES THAT 6930 04:27:58,724 --> 04:28:01,627 MIGHT BE RELEVANT TO ALL OF YOU. 6931 04:28:01,627 --> 04:28:07,666 IN 2023 WE COLLABORATED FOR AN 6932 04:28:07,666 --> 04:28:18,210 RFA UNDERSTANDING INFLUENCE OF 6933 04:28:18,577 --> 04:28:19,812 OPIOID EXPOSURE. 6934 04:28:19,812 --> 04:28:23,783 NIDA WORK SUPPORTED THROUGH THIS 6935 04:28:23,783 --> 04:28:25,317 RFA UTILIZED MRI, ULTRASOUND AND 6936 04:28:25,317 --> 04:28:27,486 MACHINE LEARNING METHODS TO 6937 04:28:27,486 --> 04:28:29,355 ANSWER QUESTIONS ABOUT OPIOID 6938 04:28:29,355 --> 04:28:32,558 EXPOSURES IMPACT ON MATERNAL 6939 04:28:32,558 --> 04:28:34,093 IMMUNE ACTIVATION AND POTENTIAL 6940 04:28:34,093 --> 04:28:38,564 ASSOCIATION TO FETAL IMMUNE 6941 04:28:38,564 --> 04:28:40,299 DYSREGULATION TO CREATE 6942 04:28:40,299 --> 04:28:41,367 SIGNALING, INFLAMMATION, EARLY 6943 04:28:41,367 --> 04:28:42,501 NEURO COGNITIVE DEVELOPMENT AND 6944 04:28:42,501 --> 04:28:42,735 MORE. 6945 04:28:42,735 --> 04:28:45,137 YOU'LL SEE THE FUNDED NIDA 6946 04:28:45,137 --> 04:28:46,438 GRANTS LISTED HERE. 6947 04:28:46,438 --> 04:28:48,073 WE'RE VERY EXCITED ABOUT THE 6948 04:28:48,073 --> 04:28:50,376 WORK SUPPORTED THROUGH THIS 6949 04:28:50,376 --> 04:28:53,012 NOFO, HOW WE CAN PUSH THE 6950 04:28:53,012 --> 04:28:56,515 ENVELOPE ON USING NOVEL 6951 04:28:56,515 --> 04:28:57,817 TECHNOLOGIES, MULTI-MODAL TO 6952 04:28:57,817 --> 04:29:00,753 UNDERSTAND PLACENTA AND FETAL 6953 04:29:00,753 --> 04:29:05,024 BRAIN OF THE COMPREHENSIVE 6954 04:29:05,024 --> 04:29:05,658 COHESIVE BIDIRECTIONAL ECOSYSTEM 6955 04:29:05,658 --> 04:29:08,327 TO ALLOW US TO DELINEATE 6956 04:29:08,327 --> 04:29:11,597 BIOLOGICAL MECHANISMS IN UTERO 6957 04:29:11,597 --> 04:29:12,364 THAT IMPACT TRAJECTORIES 6958 04:29:12,364 --> 04:29:13,899 POST-BIRTH. 6959 04:29:13,899 --> 04:29:24,076 I WOULD LIKE TO HIGHLIGHT OUR 6960 04:29:24,076 --> 04:29:25,377 TRANSLATING SOCIOENVIRONMENTAL 6961 04:29:25,377 --> 04:29:26,579 INFLUENCE NOFO CONSIDERING 6962 04:29:26,579 --> 04:29:28,981 APPLICATIONS THAT WERE REVIEWED 6963 04:29:28,981 --> 04:29:30,416 IN SPRING 2024. 6964 04:29:30,416 --> 04:29:32,051 IT AIMS TO SUPPORT PLANNING 6965 04:29:32,051 --> 04:29:34,019 GRANTS, AIMING TO UNCOVER 6966 04:29:34,019 --> 04:29:35,454 MECHANISMS, MEDIATING IMPACT OF 6967 04:29:35,454 --> 04:29:37,756 EARLY LIFE SOCIAL ENVIRONMENT ON 6968 04:29:37,756 --> 04:29:41,460 NEUROBEHAVIORAL DEVELOPMENT 6969 04:29:41,460 --> 04:29:42,995 USING RAT MODELS, LIFESPAN OF A 6970 04:29:42,995 --> 04:29:44,630 RAT LONG TERM TRAJECTORY CAN BE 6971 04:29:44,630 --> 04:29:47,032 ESTABLISHED TO UNDERSTAND HOW 6972 04:29:47,032 --> 04:29:49,468 EARLY LIFE EXPOSURES IMPACT 6973 04:29:49,468 --> 04:29:51,337 LONG-TERM DEVELOPMENT, MUST BE 6974 04:29:51,337 --> 04:29:52,171 TRANSLATABLE AND DEVELOP 6975 04:29:52,171 --> 04:29:57,543 RELEVANT TO HUMANS. 6976 04:29:57,543 --> 04:29:59,745 THE PROJECT TRANSINDA, THE 6977 04:29:59,745 --> 04:30:01,714 PROJECT FUNDED WILL REFLECT 6978 04:30:01,714 --> 04:30:03,382 COORDINATED EFFORT ACROSS 6979 04:30:03,382 --> 04:30:05,017 MULTIPLE PLANNING GRANTS TO 6980 04:30:05,017 --> 04:30:07,086 ESTABLISH A FOUNDATION TO 6981 04:30:07,086 --> 04:30:08,387 ACHIEVE VALID CROSS-SPECIES 6982 04:30:08,387 --> 04:30:09,955 MODELS OF SOCIOENVIRONMENTAL 6983 04:30:09,955 --> 04:30:12,458 RISK FACTORS. 6984 04:30:12,458 --> 04:30:16,629 AND I SHOW LISTED OUR LEAD FOR 6985 04:30:16,629 --> 04:30:17,429 THIS INITIATIVE, HOLLY MOORE, I 6986 04:30:17,429 --> 04:30:19,565 WILL MAKE SURE TO SHARE HER 6987 04:30:19,565 --> 04:30:25,471 CONTACT INFORMATION WITH YOU 6988 04:30:25,471 --> 04:30:27,239 ALL. 6989 04:30:27,239 --> 04:30:28,540 ANOTHER TESTING INNOVATIVE 6990 04:30:28,540 --> 04:30:30,509 MODELS OF SERVICE DELIVERY TO 6991 04:30:30,509 --> 04:30:32,711 ADDRESS NEEDS FOR MOTHERS 6992 04:30:32,711 --> 04:30:37,516 EXPERIENCING OUD IN PREGNANCY 6993 04:30:37,516 --> 04:30:39,919 AND POSTPARTUM PERIOD, NOSI HAS 6994 04:30:39,919 --> 04:30:43,188 EMPHASIS ON REDUCING MORTALITY, 6995 04:30:43,188 --> 04:30:44,390 PROVIDING RECOVERY ORIENTED 6996 04:30:44,390 --> 04:30:46,392 FAMILY-CENTERED CARE, THE WORK 6997 04:30:46,392 --> 04:30:48,661 FOUNDED WILL MEASURE RELEVANT 6998 04:30:48,661 --> 04:30:51,196 OUTCOMES, RELEVANT TO SERVICE 6999 04:30:51,196 --> 04:30:53,399 DELIVERY, MATERNAL OUTCOMES, 7000 04:30:53,399 --> 04:30:54,566 FAMILY OUTCOMES, INFANT 7001 04:30:54,566 --> 04:30:55,501 OUTCOMES. 7002 04:30:55,501 --> 04:30:56,468 WHILE THE NOSI ITSELF HAS 7003 04:30:56,468 --> 04:30:58,671 EXPIRED, I WANT TO POINT YOU ALL 7004 04:30:58,671 --> 04:31:01,373 TO TWO RFAs AT THE TOP, 7005 04:31:01,373 --> 04:31:04,543 ACCEPTING APPLICATIONS IN THIS 7006 04:31:04,543 --> 04:31:07,179 AREA. 7007 04:31:07,179 --> 04:31:08,814 I'VE ALSO HIGHLIGHTED MY CO-REP, 7008 04:31:08,814 --> 04:31:09,915 PROGRAM REPRESENTATIVE FOR THIS 7009 04:31:09,915 --> 04:31:10,215 WORK. 7010 04:31:10,215 --> 04:31:19,191 I WOULD LIKE TO HIGHLIGHT 7011 04:31:19,191 --> 04:31:20,726 ANOTHER NOFO, GROWTH, 7012 04:31:20,726 --> 04:31:22,261 DEVELOPMENT AND FUNCTIONING OF 7013 04:31:22,261 --> 04:31:25,230 PLACENTA IN PREGNANT INDIVIDUALS 7014 04:31:25,230 --> 04:31:30,803 AND MATERNAL OUTCOMES, THIS 7015 04:31:30,803 --> 04:31:34,473 PROGRAM IS LED BY SUNILA NAIR, 7016 04:31:34,473 --> 04:31:35,407 APPLICATION DUES THIS YEAR. 7017 04:31:35,407 --> 04:31:37,176 IF YOU HAVE ANY QUESTIONS YOU 7018 04:31:37,176 --> 04:31:42,982 CAN SEND THEM TO SUNILA OR TO 7019 04:31:42,982 --> 04:31:47,019 ME, AND I CAN ROUTE IT OVER TO 7020 04:31:47,019 --> 04:31:48,053 SUNILA. 7021 04:31:48,053 --> 04:31:50,389 I'LL DRAW YOUR ATTENTION TO 7022 04:31:50,389 --> 04:31:52,591 NIDA'S WOMEN AND SEX AND GENDER 7023 04:31:52,591 --> 04:31:55,027 RESEARCH WORKGROUP, THE MISSION 7024 04:31:55,027 --> 04:31:58,931 IS TO PROMOTE CAREERS AND WOMEN 7025 04:31:58,931 --> 04:31:59,698 SCIENTIST, AND CONDUCT, 7026 04:31:59,698 --> 04:32:00,599 TRANSLATION, DISSEMINATION OF 7027 04:32:00,599 --> 04:32:03,669 RESEARCH ON SEX AND GENDER 7028 04:32:03,669 --> 04:32:05,304 DIFFERENCES IN PHARMACOLOGY AND 7029 04:32:05,304 --> 04:32:06,705 SOCIOECONOMIC DETERMINANTS OF 7030 04:32:06,705 --> 04:32:09,041 SUBSTANCE USE DISORDERS AND 7031 04:32:09,041 --> 04:32:12,211 RESPONSES TO SUBSTANCES OF USE, 7032 04:32:12,211 --> 04:32:14,847 OBJECTIVES ARE TO DEVELOP NIDA'S 7033 04:32:14,847 --> 04:32:17,249 WOMEN AND SEX AND GENDER 7034 04:32:17,249 --> 04:32:19,518 RESEARCH AGENDA AND PRIORITIES, 7035 04:32:19,518 --> 04:32:20,853 CULTIVATE AND STRENGTHEN 7036 04:32:20,853 --> 04:32:22,154 PARTNERSHIPS WITHIN NIDA, ACROSS 7037 04:32:22,154 --> 04:32:24,023 NIH AND BEYOND, PROVIDE AN 7038 04:32:24,023 --> 04:32:25,991 OPPORTUNITY FOR EARLY CAREER 7039 04:32:25,991 --> 04:32:26,859 INVESTIGATORS TO PRESENT THEIR 7040 04:32:26,859 --> 04:32:28,961 RESEARCH, I'LL TALK ABOUT THAT 7041 04:32:28,961 --> 04:32:30,829 IN A FEW SLIDES. 7042 04:32:30,829 --> 04:32:34,066 AS I END, I'M GOING TO BEGIN 7043 04:32:34,066 --> 04:32:43,942 WITH HIGHLIGHTING A SET OF 7044 04:32:43,942 --> 04:32:45,677 NOFOs, NIDA WGRG SIGNED ON, 7045 04:32:45,677 --> 04:32:47,746 PLEASE TAKE A LOOK ONCE YOU 7046 04:32:47,746 --> 04:32:48,747 RECEIVE THE SLIDES. 7047 04:32:48,747 --> 04:32:53,118 I'D LIKE TO END BY HIGHLIGHTING 7048 04:32:53,118 --> 04:32:55,754 EARLY CAREER INVESTIGATOR 7049 04:32:55,754 --> 04:32:57,389 SEMINAR SERIES, THE GOAL TO 7050 04:32:57,389 --> 04:32:58,357 SPOTLIGHT EARLY CAREER 7051 04:32:58,357 --> 04:32:59,725 INVESTIGATORS AND RESEARCH 7052 04:32:59,725 --> 04:33:00,993 THROUGH PRESENTATIONS AND 7053 04:33:00,993 --> 04:33:01,994 SHARING OF RESOURCES. 7054 04:33:01,994 --> 04:33:04,930 YOU CAN SEE A LIST OF OUR 7055 04:33:04,930 --> 04:33:06,565 SPEAKERS OVER HERE, IF YOU HAVE 7056 04:33:06,565 --> 04:33:09,435 ANY INTEREST IN ATTENDING THESE 7057 04:33:09,435 --> 04:33:14,373 SERIES, OR THIS SERIES, PLEASE 7058 04:33:14,373 --> 04:33:16,375 LET ME OR KEISHER KNOW. 7059 04:33:16,375 --> 04:33:17,342 I'LL END MY PRESENTATION. 7060 04:33:17,342 --> 04:33:19,178 THANK YOU FOR YOUR TIME. 7061 04:33:19,178 --> 04:33:20,646 I LOOK FORWARD TO DISCUSSION 7062 04:33:20,646 --> 04:33:22,381 THAT I BELIEVE WILL START 7063 04:33:22,381 --> 04:33:22,714 SHORTLY. 7064 04:33:22,714 --> 04:33:25,451 THANK YOU SO MUCH. 7065 04:33:25,451 --> 04:33:27,086 >> THANK YOU SO MUCH. 7066 04:33:27,086 --> 04:33:28,821 THANK YOU. 7067 04:33:28,821 --> 04:33:32,324 AND WHEN WE GET NEXT VIDEO 7068 04:33:32,324 --> 04:33:34,827 PRESENTATION, I WANTED TO LET 7069 04:33:34,827 --> 04:33:38,230 EVERYBODY KNOW THIS PRESENTATION 7070 04:33:38,230 --> 04:33:39,898 IS PRE-RECORDED BUT MEMBERS ARE 7071 04:33:39,898 --> 04:33:43,702 LIVE ON ZOOM SO WE'RE GOING TO 7072 04:33:43,702 --> 04:33:49,842 HEAR FROM THEM AND ALL CAN ASK 7073 04:33:49,842 --> 04:33:51,510 QUESTIONS AND MAKE YOUR 7074 04:33:51,510 --> 04:33:53,879 COMMENTS, BE READY WITH 7075 04:33:53,879 --> 04:33:55,981 QUESTIONS TO ASK OUR MEMBERS. 7076 04:33:55,981 --> 04:33:58,584 NEXT PRESENTATION, LAST BUT NOT 7077 04:33:58,584 --> 04:34:07,226 LEAST PRESENTATION, IT WILL BE 7078 04:34:07,226 --> 04:34:07,426 NICHD. 7079 04:34:07,426 --> 04:34:08,560 >> HELLO, I'M MEGAN O'NEILL, A 7080 04:34:08,560 --> 04:34:11,230 MEDICAL CENTER IN THE 7081 04:34:11,230 --> 04:34:11,830 DEVELOPMENTAL DISABILITIES 7082 04:34:11,830 --> 04:34:13,499 BRANCH AT THE EUNICE KENNEDY 7083 04:34:13,499 --> 04:34:14,833 SHRIVER NATIONAL INSTITUTE OF 7084 04:34:14,833 --> 04:34:17,069 CHILD HEALTH AND HUMAN 7085 04:34:17,069 --> 04:34:17,803 DEVELOPMENT, NICHD. 7086 04:34:17,803 --> 04:34:19,805 I'M GLAD TO HAVE THE OPPORTUNITY 7087 04:34:19,805 --> 04:34:22,207 TO TALK BRIEFLY TODAY ABOUT THE 7088 04:34:22,207 --> 04:34:23,876 INTERAGENCY COORDINATING 7089 04:34:23,876 --> 04:34:26,378 COMMITTEE OF FETAL ALCOHOL 7090 04:34:26,378 --> 04:34:27,346 SPECTRUM DISORDERS ABOUT SOME 7091 04:34:27,346 --> 04:34:30,883 NICHD ACTIVITIES WITH RELEVANCE 7092 04:34:30,883 --> 04:34:31,116 TO FASD. 7093 04:34:31,116 --> 04:34:33,819 FIRST I'D LIKE TO GIVE A BRIEF 7094 04:34:33,819 --> 04:34:35,354 OVERVIEW OF NICHD AND RESEARCH 7095 04:34:35,354 --> 04:34:35,888 WE SUPPORT. 7096 04:34:35,888 --> 04:34:41,360 OUR INSTITUTE IS NOTABLE FOR 7097 04:34:41,360 --> 04:34:42,561 BREADTH OF MISSION, FUNDING 7098 04:34:42,561 --> 04:34:44,763 RESEARCH ACROSS MULTIPLE AREAS 7099 04:34:44,763 --> 04:34:45,864 OF SCIENCE, ENCOMPASSING A BROAD 7100 04:34:45,864 --> 04:34:48,167 RANGE OF CHILD HEALTH RESEARCH 7101 04:34:48,167 --> 04:34:51,770 INCLUDING MY BRANCH ON 7102 04:34:51,770 --> 04:34:54,273 INTELLECTUAL AND DEVELOPMENTAL 7103 04:34:54,273 --> 04:34:55,474 DISABILITIES, RESEARCH 7104 04:34:55,474 --> 04:34:56,975 ADDRESSING PRE, PERI, NEONATAL 7105 04:34:56,975 --> 04:34:58,477 HEALTH, PREGNANCY AND MATERNAL 7106 04:34:58,477 --> 04:35:00,212 HEALTH, MULTIPLE ASPECT IT'S OF 7107 04:35:00,212 --> 04:35:06,985 REPRODUCTIVE HEALTH INCLUDING 7108 04:35:06,985 --> 04:35:09,621 AREAS HERE. 7109 04:35:09,621 --> 04:35:13,225 THE NICHD HOUSE NATIONAL CENTER 7110 04:35:13,225 --> 04:35:14,893 FOR MEDICAL REHABILITATION 7111 04:35:14,893 --> 04:35:16,328 RESEARCH, WHICH SUPPORTS 7112 04:35:16,328 --> 04:35:20,465 REHABILITATION RESEARCH ACROSS 7113 04:35:20,465 --> 04:35:21,266 THE LIFESPAN. 7114 04:35:21,266 --> 04:35:30,976 THE NIAAA IS THE LEAD INSTITUTE 7115 04:35:30,976 --> 04:35:32,077 HE ON FASD. 7116 04:35:32,077 --> 04:35:33,478 VERY FEW AWARDS ARE FOCUSED ONLY 7117 04:35:33,478 --> 04:35:38,183 ON ALCOHOL USE IN PREGNANCY OR 7118 04:35:38,183 --> 04:35:39,384 CHILDREN WITH FASD. 7119 04:35:39,384 --> 04:35:40,919 WE SUPPORT BASIC SCIENCE 7120 04:35:40,919 --> 04:35:42,888 RESEARCH ON EFFECT OF PRENATAL 7121 04:35:42,888 --> 04:35:46,391 EXPOSURE ON ASKING ON ASKING 7122 04:35:46,391 --> 04:35:48,460 CELL -- USING CELLULAR OR ANIMAL 7123 04:35:48,460 --> 04:35:49,995 MODELS, AND WE ADDRESS POLY 7124 04:35:49,995 --> 04:35:50,862 SUBSTANCE USE. 7125 04:35:50,862 --> 04:35:52,764 A FEW WORDS ARE MORE SPECIFIC TO 7126 04:35:52,764 --> 04:35:55,067 FASTED IN JUST A BIT. 7127 04:35:55,067 --> 04:35:57,569 BEYOND THIS IT'S WORTH NOTING 7128 04:35:57,569 --> 04:35:59,204 THE NICHD PROVIDES SUBSTANTIAL 7129 04:35:59,204 --> 04:36:00,839 SUPPORT FOR RESEARCH INVOLVING 7130 04:36:00,839 --> 04:36:02,941 CHILDREN WITH INTELLECTUAL AND 7131 04:36:02,941 --> 04:36:04,109 DEVELOPMENTAL DISABILITIES, WE 7132 04:36:04,109 --> 04:36:06,111 HOPE THIS RESEARCH BROADLY 7133 04:36:06,111 --> 04:36:07,512 BENEFITS ALL CHILDREN WITH 7134 04:36:07,512 --> 04:36:08,080 DEVELOPMENTAL DISABILITIES 7135 04:36:08,080 --> 04:36:11,883 INCLUDING THOSE WITH FASD. 7136 04:36:11,883 --> 04:36:14,186 FINALLY, NICHD PARTICIPATE IN A 7137 04:36:14,186 --> 04:36:15,621 NUMBER OF TRANS-NIH 7138 04:36:15,621 --> 04:36:16,655 COLLABORATIONS THAT MAY 7139 04:36:16,655 --> 04:36:18,457 ULTIMATELY INFORM THE FIELD OF 7140 04:36:18,457 --> 04:36:22,928 FASD RESEARCH, WHICH I WILL TALK 7141 04:36:22,928 --> 04:36:23,295 ABOUT MORE NEXT. 7142 04:36:23,295 --> 04:36:27,099 I WANTED TO FIRST QUICKLY 7143 04:36:27,099 --> 04:36:29,301 HIGHLIGHT TWO TRANS-NIH 7144 04:36:29,301 --> 04:36:33,105 COLLABORATIONS WERE NICHD BEING 7145 04:36:33,105 --> 04:36:35,641 VERY ACTIVE, IMPROVE INITIATIVE 7146 04:36:35,641 --> 04:36:40,879 AND ABLEISM IN MEDICINE AND 7147 04:36:40,879 --> 04:36:41,346 RESEARCH. 7148 04:36:41,346 --> 04:36:43,181 IMPROVE INITIATIVE IS A 7149 04:36:43,181 --> 04:36:44,950 TRANS-NIH INITIATIVE AIMED AT 7150 04:36:44,950 --> 04:36:47,252 REDUCING MATERNAL MORBIDITY AND 7151 04:36:47,252 --> 04:36:47,653 MORTALITY. 7152 04:36:47,653 --> 04:36:49,588 NICHD IS PLAYING A KEY ROLE IN 7153 04:36:49,588 --> 04:36:51,757 HELPING LEAD THIS INITIATIVE 7154 04:36:51,757 --> 04:36:53,825 WERE ADDITIONAL SUPPORT FROM 7155 04:36:53,825 --> 04:36:55,360 MULTIPLE INSTITUTES, CENTERS, 7156 04:36:55,360 --> 04:36:55,727 OFFICES. 7157 04:36:55,727 --> 04:36:57,229 THIS INITIATIVE SUPPORTS 7158 04:36:57,229 --> 04:36:59,097 RESEARCH TO REDUCE PREVENTIBLE 7159 04:36:59,097 --> 04:37:01,500 CAUSES OF MATERNAL DEATH AND 7160 04:37:01,500 --> 04:37:03,502 IMPROVE HEALTH FOR WOMEN BEFORE, 7161 04:37:03,502 --> 04:37:05,671 DURING, AFTER DELIVERY, 7162 04:37:05,671 --> 04:37:08,874 INCLUDING CONTRIBUTING HEALTH 7163 04:37:08,874 --> 04:37:10,809 CONDITIONS AND ASSOCIATE 7164 04:37:10,809 --> 04:37:11,677 FACTORS. 7165 04:37:11,677 --> 04:37:14,880 DOES NOT NECESSARILY FUND IN 7166 04:37:14,880 --> 04:37:17,049 ISOLATION, MANY ASPECTS ARE 7167 04:37:17,049 --> 04:37:20,118 BEING INVESTIGATED BY 7168 04:37:20,118 --> 04:37:21,520 RESEARCHERS THROUGH THIS 7169 04:37:21,520 --> 04:37:21,820 INITIATIVE. 7170 04:37:21,820 --> 04:37:24,589 NICHD HAS ALSO BEEN INVOLVED IN 7171 04:37:24,589 --> 04:37:26,024 THE TRANS-NIH COLLABORATION TO 7172 04:37:26,024 --> 04:37:28,427 BETTER UNDERSTAND AND COMBAT 7173 04:37:28,427 --> 04:37:29,761 ABLEISM IN MEDICINE AND 7174 04:37:29,761 --> 04:37:31,063 RESEARCH, REFERRING TO THE 7175 04:37:31,063 --> 04:37:32,931 ASSUMPTION THAT PERSONS WITH 7176 04:37:32,931 --> 04:37:34,900 DISABILITIES ARE INFERIOR OR 7177 04:37:34,900 --> 04:37:36,735 INADEQUATE LEADING TO 7178 04:37:36,735 --> 04:37:38,870 DISCRIMINATION AND SOCIAL 7179 04:37:38,870 --> 04:37:41,273 PREJUDICE. 7180 04:37:41,273 --> 04:37:43,675 ABLEISM LED TO HISTORICAL 7181 04:37:43,675 --> 04:37:45,110 UNDERREPRESENTATION OF PEOPLE IN 7182 04:37:45,110 --> 04:37:49,614 RESEARCH, SOMETHING WE'VE BEEN 7183 04:37:49,614 --> 04:37:51,917 TRYING TO ADDRESS. 7184 04:37:51,917 --> 04:37:54,086 ONE YEAR AGO NICHD'S NATIONAL 7185 04:37:54,086 --> 04:37:55,187 CENTER FOR MEDICAL 7186 04:37:55,187 --> 04:37:56,121 REHABILITATION RESEARCH 7187 04:37:56,121 --> 04:38:00,459 SPONSORED A TWO-DAY WEBINAR 7188 04:38:00,459 --> 04:38:01,626 FOCUSING ON AWARENESS IN 7189 04:38:01,626 --> 04:38:02,627 RESEARCH OPPORTUNITIES TO 7190 04:38:02,627 --> 04:38:04,930 MITIGATE EFFECT IN CLINICAL CARE 7191 04:38:04,930 --> 04:38:09,634 AND BIOMEDICAL AND BEHAVIORAL 7192 04:38:09,634 --> 04:38:10,936 ENTERPRISE, AVAILABLE FOR 7193 04:38:10,936 --> 04:38:12,471 VIEWING FOR NIH VIDEOCAST WITH 7194 04:38:12,471 --> 04:38:15,974 LINKS ON THIS SLIDE. 7195 04:38:15,974 --> 04:38:16,975 THESE CONVERSATIONS ABOUT 7196 04:38:16,975 --> 04:38:18,510 DISABILITY REPRESENTATION LED 7197 04:38:18,510 --> 04:38:20,245 THE NIH TO RECENTLY RECOGNIZE 7198 04:38:20,245 --> 04:38:22,647 THOSE WITH DISABILITIES AS A 7199 04:38:22,647 --> 04:38:24,182 HEALTH DISPARITY POPULATION. 7200 04:38:24,182 --> 04:38:24,950 THIS REPRESENTATIVES AGENCY-WIDE 7201 04:38:24,950 --> 04:38:29,020 EFFORT TO ADVANCE HEALTH EQUITY 7202 04:38:29,020 --> 04:38:30,322 WITH THE GOAL OF TURNING 7203 04:38:30,322 --> 04:38:31,623 DISCOVERIES INTO BETTER HEALTH 7204 04:38:31,623 --> 04:38:35,794 FOR ALL INDIVIDUALS WITH 7205 04:38:35,794 --> 04:38:36,128 DISABILITIES. 7206 04:38:36,128 --> 04:38:38,430 AT THE NICHD WE PUT FORTH A 7207 04:38:38,430 --> 04:38:40,499 REQUEST FOR APPLICATIONS WITH 7208 04:38:40,499 --> 04:38:44,202 SET-ASIDE FUNDS, UNDERSTANDING 7209 04:38:44,202 --> 04:38:45,771 AND MITIGATING HEALTH 7210 04:38:45,771 --> 04:38:47,406 DISPARITIES CAUSED BY AGEISM. 7211 04:38:47,406 --> 04:38:49,574 THE NIH AT LARGE HAS EXTENDED A 7212 04:38:49,574 --> 04:38:54,813 NOTICE OF FUNDING OPPORTUNITY 7213 04:38:54,813 --> 04:38:56,581 FOR HEALTH AND HEALTH CARE 7214 04:38:56,581 --> 04:38:58,450 DISPARITIES WITH PERSONS WITH 7215 04:38:58,450 --> 04:38:59,017 DISABILITIES, OPPORTUNITIES 7216 04:38:59,017 --> 04:39:00,852 WHICH WE HOPE FASD RESEARCHERS 7217 04:39:00,852 --> 04:39:02,821 WILL TAKE ADVANTAGE OF, IN THE 7218 04:39:02,821 --> 04:39:03,822 NEXT SEVERAL YEARS. 7219 04:39:03,822 --> 04:39:05,357 FINALLY I WANTED TO BRIEFLY 7220 04:39:05,357 --> 04:39:07,325 DISCUSS A FEW EXAMPLES OF 7221 04:39:07,325 --> 04:39:09,294 RESEARCH RELEVANT TO FASD THAT 7222 04:39:09,294 --> 04:39:11,496 HAS BEEN SUPPORTED BY NICHD 7223 04:39:11,496 --> 04:39:11,863 FUNDING. 7224 04:39:11,863 --> 04:39:22,407 THIS FIRST EXAMPLE REFERENCE -S 7225 04:39:25,243 --> 04:39:26,812 THE SAFE PASSAGE STUDY. 7226 04:39:26,812 --> 04:39:28,580 THIS STUDY WAS FUNDED THROUGH 7227 04:39:28,580 --> 04:39:30,182 NICHD SEVERAL YEARS AGO, 7228 04:39:30,182 --> 04:39:31,716 FOLLOWED OVER 10,000 WOMEN'S 7229 04:39:31,716 --> 04:39:33,151 PREGNANCY FROM TWO SITES IN 7230 04:39:33,151 --> 04:39:34,886 SOUTH AFRICA AND SEVERAL SITES 7231 04:39:34,886 --> 04:39:37,022 IN THE NORTHERN PLAINS REGION OF 7232 04:39:37,022 --> 04:39:39,124 THE UNITED STATES. 7233 04:39:39,124 --> 04:39:40,859 FROM 2007 TO 2015. 7234 04:39:40,859 --> 04:39:43,061 DATA GENERATED FROM THIS COHORT 7235 04:39:43,061 --> 04:39:45,897 STUDY IS A RICH RESOURCE FOR 7236 04:39:45,897 --> 04:39:47,866 RESEARCHERS INTERESTED IN 7237 04:39:47,866 --> 04:39:49,935 PRENATAL EXPOSURES, CHILD 7238 04:39:49,935 --> 04:39:51,903 DEVELOPMENT, PATHOLOGICAL 7239 04:39:51,903 --> 04:39:55,974 ASSESSMENTS OF SIDS, STILLBIRTH, 7240 04:39:55,974 --> 04:39:56,575 FASD. 7241 04:39:56,575 --> 04:39:57,175 RESEARCHERS FROM NETHERLANDS 7242 04:39:57,175 --> 04:39:58,810 ANALYZED DATA FROM THE SAFE 7243 04:39:58,810 --> 04:40:00,779 PASSAGE STUDY TO EXAMINE EFFECT 7244 04:40:00,779 --> 04:40:02,647 OF PRENATAL ALCOHOL EXPOSURE ON 7245 04:40:02,647 --> 04:40:03,648 FETAL GROWTH. 7246 04:40:03,648 --> 04:40:06,151 THEY FOUND THAT IMPACTS ON FETAL 7247 04:40:06,151 --> 04:40:08,353 GROWTH VARIED WITH TIMING OF 7248 04:40:08,353 --> 04:40:09,988 PRENATAL ALCOHOL EXPOSURE, WITH 7249 04:40:09,988 --> 04:40:11,723 MORE SIGNIFICANT EFFECT NOTED 7250 04:40:11,723 --> 04:40:13,558 WITH EXPOSURE DURING THE 7251 04:40:13,558 --> 04:40:15,560 PERICONCEPTION PERIOD AND IN THE 7252 04:40:15,560 --> 04:40:16,862 SECOND TRIMESTER. 7253 04:40:16,862 --> 04:40:18,430 THIS HIGHLIGHTS IMPORTANCE OF 7254 04:40:18,430 --> 04:40:19,397 COUNSELING PREGNANT WOMEN 7255 04:40:19,397 --> 04:40:22,267 REGARDING RISK OF ALCOHOL 7256 04:40:22,267 --> 04:40:25,103 EXPOSURE THROUGHOUT PREGNANCY. 7257 04:40:25,103 --> 04:40:26,071 ADDITIONALLY, TWO ACTIVE AWARDS 7258 04:40:26,071 --> 04:40:28,507 THROUGH THE NICHD ARE CURRENTLY 7259 04:40:28,507 --> 04:40:30,141 FOCUSING ON DOCUMENTING AND 7260 04:40:30,141 --> 04:40:32,777 ARCHIVING STUDY DATA FROM SAFE 7261 04:40:32,777 --> 04:40:35,180 PASSAGE STUDY, NICHD DATA AND 7262 04:40:35,180 --> 04:40:38,250 SPECIMEN HUB, DASH, AS WELL AS 7263 04:40:38,250 --> 04:40:39,751 CREATING BIOSPECIMEN REPOSITORY. 7264 04:40:39,751 --> 04:40:41,620 THESE AWARDS ARE CRUCIAL IN 7265 04:40:41,620 --> 04:40:43,054 ENSURING FUTURE PUBLIC 7266 04:40:43,054 --> 04:40:44,489 AVAILABILITY OF THIS INVALUABLE 7267 04:40:44,489 --> 04:40:46,458 RESOURCE TO RESEARCHERS 7268 04:40:46,458 --> 04:40:49,327 INTERESTED IN SECONDARY ANALYSIS 7269 04:40:49,327 --> 04:40:52,597 OF DATASETS ON FASD. 7270 04:40:52,597 --> 04:40:54,332 THE NEXT EXAMPLE ILLUSTRATES 7271 04:40:54,332 --> 04:40:56,835 SUPPORTS FOR STRENGTHENING 7272 04:40:56,835 --> 04:40:58,603 SCIENCE AROUND BIOMARKERS, 7273 04:40:58,603 --> 04:41:00,772 INVOLVING SCIENCE, ANIMAL MODEL 7274 04:41:00,772 --> 04:41:02,974 AND CLINICAL ASPECTS. 7275 04:41:02,974 --> 04:41:03,942 BIOMARKERS REPRESENT DEFINED 7276 04:41:03,942 --> 04:41:04,943 CHARACTERISTICS MEASURED AS 7277 04:41:04,943 --> 04:41:07,312 INDICATOR OF NORMAL OR ABNORMAL 7278 04:41:07,312 --> 04:41:08,647 BIOLOGICAL PROCESS, OR OF A 7279 04:41:08,647 --> 04:41:09,748 CONDITION OR DISEASE WHICH MAY 7280 04:41:09,748 --> 04:41:12,284 BE USED TO SEE HOW WELL THE BODY 7281 04:41:12,284 --> 04:41:14,586 RESPONDS TO A TREATMENT FOR A 7282 04:41:14,586 --> 04:41:17,422 DISEASE OR CONDITION. 7283 04:41:17,422 --> 04:41:19,257 RESEARCH TEAM AT TEMPLE 7284 04:41:19,257 --> 04:41:20,058 UNIVERSITY INVESTIGATED 7285 04:41:20,058 --> 04:41:21,426 BIOMARKERS IN FASTED WITH 7286 04:41:21,426 --> 04:41:23,728 FUNDING FROM NICHD AND THIS 7287 04:41:23,728 --> 04:41:25,797 PROJECT WAS COMPLETED A FEW 7288 04:41:25,797 --> 04:41:28,300 YEARS AGO AUTHORS CONTINUE TO 7289 04:41:28,300 --> 04:41:29,434 GENERATE PUBLICATIONS IMPORTANT 7290 04:41:29,434 --> 04:41:30,502 TO FASD COMMUNITY. 7291 04:41:30,502 --> 04:41:32,470 THE AUTHORS NOTED THAT PRIOR 7292 04:41:32,470 --> 04:41:38,610 RESEARCH HAS SUGGESTED A ROLE OF 7293 04:41:38,610 --> 04:41:40,378 DYSMYELINATION THAT SURROUNDS 7294 04:41:40,378 --> 04:41:43,748 NERVE CELLS IN THE BRAIN IN 7295 04:41:43,748 --> 04:41:54,292 DEVELOPMENT OF FASD, STUDIED LIP 7296 04:41:55,393 --> 04:41:55,927 LIQUID OLIGODENDROCYTES, LOWER 7297 04:41:55,927 --> 04:41:58,063 COMPARED TO THOSE WHO DID NOT. 7298 04:41:58,063 --> 04:41:59,497 THIS INDICATES LIPID BIOMARKERS 7299 04:41:59,497 --> 04:42:01,466 COULD BE POTENTIALLY USEFUL IN 7300 04:42:01,466 --> 04:42:03,101 HELPING PREDICT RISK OF FASD, 7301 04:42:03,101 --> 04:42:06,471 THEY MAY ALSO SERVE AS PROMISING 7302 04:42:06,471 --> 04:42:08,773 TARGETS FOR FUTURE THERAPEUTIC 7303 04:42:08,773 --> 04:42:09,207 INTERVENTIONS. 7304 04:42:09,207 --> 04:42:15,013 THE SAME TEAM AT TEMPLE 7305 04:42:15,013 --> 04:42:18,950 UNIVERSITY EXAMINE BIOMARKERS OF 7306 04:42:18,950 --> 04:42:19,951 AFFECTIVE DYSREGULATION, 7307 04:42:19,951 --> 04:42:22,153 POSTULATING THE SERATONERGIC 7308 04:42:22,153 --> 04:42:23,755 SYSTEMS MAY BE ALTERED. 7309 04:42:23,755 --> 04:42:27,258 THEY FOUND THAT MATERNAL ALCOHOL 7310 04:42:27,258 --> 04:42:29,227 CONSUMPTION, MATERNAL DEPRESSION 7311 04:42:29,227 --> 04:42:31,129 AND SSRI USE INDEPENDENTLY AND 7312 04:42:31,129 --> 04:42:33,999 IN COMBINATION ARE ASSOCIATED 7313 04:42:33,999 --> 04:42:36,701 WITH ABNORMALITIES AT mRNA AND 7314 04:42:36,701 --> 04:42:39,004 PROTEIN LEVELS OF MOLECULAR 7315 04:42:39,004 --> 04:42:40,972 LEVELS OF NEUROTRANSMITTERS FOR 7316 04:42:40,972 --> 04:42:44,376 SYSTEMS ASSOCIATED WITH ABNORMAL 7317 04:42:44,376 --> 04:42:49,280 MOOD REGULATION, COULD BE USED 7318 04:42:49,280 --> 04:42:52,917 TO PREDICT WHICH WILL HAVE FASD 7319 04:42:52,917 --> 04:42:57,822 POSTNATAL AND INCLUDE A 7320 04:42:57,822 --> 04:42:58,556 AFFECTIVE DYSREGULATION. 7321 04:42:58,556 --> 04:43:00,358 THE LAST IS A FELLOWSHIP AWARD 7322 04:43:00,358 --> 04:43:01,660 WITH AIMING DEVELOPING 7323 04:43:01,660 --> 04:43:02,761 INTERVENTION FOR TEACHERS 7324 04:43:02,761 --> 04:43:04,729 WORKING WITH CHILDREN WITH FASD, 7325 04:43:04,729 --> 04:43:07,132 GIVEN TWO TO FIVE PERCENT OF 7326 04:43:07,132 --> 04:43:17,642 SCHOOL AGE CHILDREN MAY HAVE 7327 04:43:18,943 --> 04:43:20,078 DISORDERS IT'S IMPERATIVE 7328 04:43:20,078 --> 04:43:22,247 TEACHERS RECEIVE TRAINING. 7329 04:43:22,247 --> 04:43:24,683 THIS SEEKS TO PILOT A WEBSITE 7330 04:43:24,683 --> 04:43:25,750 FOR TEACHERS INCORPORATING 7331 04:43:25,750 --> 04:43:28,486 MATERIALS ADAPTED FROM THE 7332 04:43:28,486 --> 04:43:31,156 FAMILIES MOVING FORWARD PROGRAM, 7333 04:43:31,156 --> 04:43:32,223 A VALIDATED PARENT INTERVENTION 7334 04:43:32,223 --> 04:43:32,924 FOR FASD. 7335 04:43:32,924 --> 04:43:36,261 THIS STUDY IS NOT COMPLETED SO 7336 04:43:36,261 --> 04:43:38,029 WE'RE AWAITING RESULTS IN 7337 04:43:38,029 --> 04:43:39,564 PUBLICATIONS BUT AIMS TO FILL A 7338 04:43:39,564 --> 04:43:42,834 GAP IN RESEARCH SPACE AND ALSO 7339 04:43:42,834 --> 04:43:46,104 RECOMMENDS TRAINEE AWARD TO 7340 04:43:46,104 --> 04:43:48,540 SUPPORT MENTORING OF A YOUNG 7341 04:43:48,540 --> 04:43:50,175 INVESTIGATOR IN FASD. 7342 04:43:50,175 --> 04:43:51,810 THAT CONCLUDES OUR SUMMARY OF 7343 04:43:51,810 --> 04:43:53,078 NICHD ACTIVITIES IN THE FASD 7344 04:43:53,078 --> 04:43:53,378 SPACE. 7345 04:43:53,378 --> 04:43:55,480 I THANK YOU FOR YOUR TIME AND 7346 04:43:55,480 --> 04:43:56,781 WELCOME ANY QUESTIONS DURING 7347 04:43:56,781 --> 04:43:58,316 THIS SESSION TODAY OR VIA 7348 04:43:58,316 --> 04:43:58,550 E-MAIL. 7349 04:43:58,550 --> 04:44:04,789 THANK YOU. 7350 04:44:04,789 --> 04:44:05,657 >> THANK YOU, WONDERFUL 7351 04:44:05,657 --> 04:44:06,191 PRESENTATION. 7352 04:44:06,191 --> 04:44:09,828 I WANT TO CLAP MY HANDS AND TELL 7353 04:44:09,828 --> 04:44:16,735 THAT IT'S PARTICULARLY A GREAT 7354 04:44:16,735 --> 04:44:19,437 PRESENTATION BECAUSE DR. O'NEILL 7355 04:44:19,437 --> 04:44:20,805 JUST JOINED RECENTLY, WE LOOK 7356 04:44:20,805 --> 04:44:22,440 FORWARD TO THE INTERVIEW. 7357 04:44:22,440 --> 04:44:26,478 WE HAVE ALL PEOPLE ON ZOOM IN 7358 04:44:26,478 --> 04:44:27,679 DISCUSSION MODE PLEASE. 7359 04:44:27,679 --> 04:44:30,081 WE ENCOURAGE YOU TO TURN ON YOUR 7360 04:44:30,081 --> 04:44:32,383 VIDEO CAMERAS AND WE ARE GOING 7361 04:44:32,383 --> 04:44:37,722 TO HAVE DISCUSSION ON THESE 7362 04:44:37,722 --> 04:44:39,290 PRESENTATIONS AND MOVE TO 7363 04:44:39,290 --> 04:44:40,091 DISCUSSION, CONCLUSION 7364 04:44:40,091 --> 04:44:41,159 DISCUSSION FOR MEETING. 7365 04:44:41,159 --> 04:44:43,661 WE HAVE NOW TIME TO DISCUSS. 7366 04:44:43,661 --> 04:44:47,832 BY NOW EVERYBODY IS TIRED BUT WE 7367 04:44:47,832 --> 04:44:50,101 APPRECIATE YOUR PARTICIPATION. 7368 04:44:50,101 --> 04:44:53,304 AND BEFORE WE DISCUSS, WHEN 7369 04:44:53,304 --> 04:44:54,739 EVERYBODY'S GETTING THINGS 7370 04:44:54,739 --> 04:44:57,242 TOGETHER, JUST TO SAY IT'S MORE 7371 04:44:57,242 --> 04:44:59,878 DIFFICULT TO DO ONLINE AND ZOOM, 7372 04:44:59,878 --> 04:45:00,745 RIGHT? 7373 04:45:00,745 --> 04:45:03,481 ZOOM AND AT THE SAME TIME HERE 7374 04:45:03,481 --> 04:45:05,550 IN PERSON, WE MISS YOU ALL ON 7375 04:45:05,550 --> 04:45:08,720 ZOOM NOW. 7376 04:45:08,720 --> 04:45:11,122 BUT WE JUST HAVE NEW REALITY, 7377 04:45:11,122 --> 04:45:14,959 TWO DIFFERENT ROOMS. 7378 04:45:14,959 --> 04:45:15,160 BACK. 7379 04:45:15,160 --> 04:45:16,394 TURN ON YOUR VIDEO. 7380 04:45:16,394 --> 04:45:17,829 HAVE YOUR QUESTIONS READY, IT'S 7381 04:45:17,829 --> 04:45:18,229 TIME. 7382 04:45:18,229 --> 04:45:20,131 THANK YOU FOR GREAT 7383 04:45:20,131 --> 04:45:21,299 PRESENTATIONS. 7384 04:45:21,299 --> 04:45:22,100 ANY QUESTIONS FROM VIDEOCAST 7385 04:45:22,100 --> 04:45:25,170 NOW? 7386 04:45:25,170 --> 04:45:27,906 >> WE HAVE ONE QUESTION. 7387 04:45:27,906 --> 04:45:34,445 I'M NOT SURE ANY, ANY OF US 7388 04:45:34,445 --> 04:45:36,014 COULD ANSWER IF YOU HAVE AN 7389 04:45:36,014 --> 04:45:37,448 ANSWER TO THE QUESTION FROM 7390 04:45:37,448 --> 04:45:38,650 SYDNEY GARDNER. 7391 04:45:38,650 --> 04:45:42,587 IS THERE ANY RESEARCH EXAMINING 7392 04:45:42,587 --> 04:45:44,656 THE ATTITUDES AND ENROLLMENT OF 7393 04:45:44,656 --> 04:45:46,524 PREGNANT PERSONS WHEN PROVIDED 7394 04:45:46,524 --> 04:45:51,229 THE OPPORTUNITY TO STAY WITH 7395 04:45:51,229 --> 04:45:57,402 INFANTS IN FAMILY-CENTERED 7396 04:45:57,402 --> 04:45:59,571 TWO-GENERATION TREATMENT. 7397 04:45:59,571 --> 04:46:00,872 I'M NOT AWARE OF ANY. 7398 04:46:00,872 --> 04:46:05,944 >> WHO WOULD LIKE TO ANSWER? 7399 04:46:05,944 --> 04:46:08,346 >> ANYONE ON THE VIDEOCAST? 7400 04:46:08,346 --> 04:46:09,013 LET'S SEE. 7401 04:46:09,013 --> 04:46:12,150 NO. 7402 04:46:12,150 --> 04:46:16,087 >> I DON'T HAVE AN ANSWER BUT 7403 04:46:16,087 --> 04:46:16,888 IT'S POTENTIALLY SOMETHING I 7404 04:46:16,888 --> 04:46:20,258 COULD BRING BACK TO THE KEISRER 7405 04:46:20,258 --> 04:46:26,731 FOR THE PROGRAMS SHE MANAGES. 7406 04:46:26,731 --> 04:46:27,298 >> SOUND GREAT. 7407 04:46:27,298 --> 04:46:30,335 >> THANK YOU ALSO TO OUR I.T. 7408 04:46:30,335 --> 04:46:30,902 SUPPORT. 7409 04:46:30,902 --> 04:46:32,103 PLEASE ALLOW ALL PARTICIPANTS ON 7410 04:46:32,103 --> 04:46:36,040 ZOOM TO HAVE THEIR CAMERAS ON. 7411 04:46:36,040 --> 04:46:38,009 I GET MESSAGE SAYING THEY NEED 7412 04:46:38,009 --> 04:46:46,317 HELP FROM YOU. 7413 04:46:46,317 --> 04:46:49,587 ALL RIGHT. 7414 04:46:49,587 --> 04:46:49,854 WONDERFUL. 7415 04:46:49,854 --> 04:46:51,356 >> THE SAFE PASSAGE PROJECT, SO 7416 04:46:51,356 --> 04:46:55,727 GLAD THAT THAT WAS INCLUDED. 7417 04:46:55,727 --> 04:46:57,695 AND SOME IMPORTANT FINDINGS FROM 7418 04:46:57,695 --> 04:46:57,929 THAT. 7419 04:46:57,929 --> 04:46:59,898 AS A WHOM WHO HAD A CHILD THAT 7420 04:46:59,898 --> 04:47:06,004 DIED OF SIDS AND ONE THAT DIED 7421 04:47:06,004 --> 04:47:11,676 AT BIRTH, IT'S AGAIN VERY 7422 04:47:11,676 --> 04:47:16,414 DISTRESSFUL, DISTRESSING, 7423 04:47:16,414 --> 04:47:18,283 UPSETTING, THAT THAT INFORMATION 7424 04:47:18,283 --> 04:47:20,018 DOESN'T GET TO NOT ONLY HEALTH 7425 04:47:20,018 --> 04:47:22,987 CARE PROVIDERS BUT THE GENERAL 7426 04:47:22,987 --> 04:47:23,354 PUBLIC. 7427 04:47:23,354 --> 04:47:25,423 AND I HEAR IT STILL. 7428 04:47:25,423 --> 04:47:27,825 THAT WAS 40-SOME YEARS AGO. 7429 04:47:27,825 --> 04:47:29,661 AND WHEN I SPEAK PUBLICLY IN 7430 04:47:29,661 --> 04:47:31,629 FRONT OF WOMEN OR WOMEN THAT 7431 04:47:31,629 --> 04:47:33,398 COME TO MY MEETINGS AND THEY 7432 04:47:33,398 --> 04:47:35,600 HAVE THAT SAME LIVED EXPERIENCE 7433 04:47:35,600 --> 04:47:38,569 THROUGH THE COVID YEARS, WE HAD 7434 04:47:38,569 --> 04:47:42,273 SEVERAL WOMEN WITH THAT WHO HAD 7435 04:47:42,273 --> 04:47:45,576 AN INFANT DIE OR AT BIRTH OR 7436 04:47:45,576 --> 04:47:46,110 SIDS. 7437 04:47:46,110 --> 04:47:48,846 SO THIS IS SOMETHING THAT IS 7438 04:47:48,846 --> 04:47:51,382 HAPPENING STILL BUT THERE IS A 7439 04:47:51,382 --> 04:47:52,784 COMPLETE DISCONNECT AND, AGAIN, 7440 04:47:52,784 --> 04:47:55,753 IT'S LIKE WHY DIDN'T THAT 7441 04:47:55,753 --> 04:47:57,121 RESEARCH REALLY GET OUT THERE TO 7442 04:47:57,121 --> 04:47:59,357 WHERE IT NEED TO BE? 7443 04:47:59,357 --> 04:48:02,393 SO IT'S ALWAYS A BIG QUESTION IN 7444 04:48:02,393 --> 04:48:03,828 MY MIND. 7445 04:48:03,828 --> 04:48:06,664 >> YEAH, MAYBE MEGHAN CAN SHARE 7446 04:48:06,664 --> 04:48:08,666 HER THOUGHTS. 7447 04:48:08,666 --> 04:48:10,168 BUT THAT STUDY WAS TEN YEARS, 7448 04:48:10,168 --> 04:48:16,874 OVER TEN YEARS IN THE MAKING. 7449 04:48:16,874 --> 04:48:18,276 UNFORTUNATELY, THE SEMINAL 7450 04:48:18,276 --> 04:48:19,811 FINDING RELATED TO SIDS, THAT 7451 04:48:19,811 --> 04:48:21,779 PRESS RELEASE CAME OUT, AND I 7452 04:48:21,779 --> 04:48:23,581 JUST LOOKED IT UP, END OF 7453 04:48:23,581 --> 04:48:24,849 JANUARY 2020. 7454 04:48:24,849 --> 04:48:31,522 IT WAS JUST AS THE PANDEMIC HIT. 7455 04:48:31,522 --> 04:48:32,223 UNFORTUNATELY. 7456 04:48:32,223 --> 04:48:34,559 THAT NEWS RELEASE SHOWED 7457 04:48:34,559 --> 04:48:36,861 TWELVE-FOLD INCREASE IN RISK OF 7458 04:48:36,861 --> 04:48:44,736 SIDS WITH EXPOSURE BEYOND FIRST 7459 04:48:44,736 --> 04:48:46,838 TRIMESTER. 7460 04:48:46,838 --> 04:48:49,674 AND YOU'RE RIGHT, KATH, IF 7461 04:48:49,674 --> 04:48:50,875 SITUATIONS IN THE WORLD WERE 7462 04:48:50,875 --> 04:48:51,743 DIFFERENT WE COULD HAVE BEEN 7463 04:48:51,743 --> 04:48:55,346 ABLE TO GET THAT MESSAGE OUT. 7464 04:48:55,346 --> 04:48:57,415 I THINK NICHD DID A GREAT JOB 7465 04:48:57,415 --> 04:48:59,050 WITH MEDIA RELEASES, OUR 7466 04:48:59,050 --> 04:49:02,487 INVESTIGATORS REALLY GOT OUT 7467 04:49:02,487 --> 04:49:04,222 THERE AND DID INTERVIEWS. 7468 04:49:04,222 --> 04:49:05,757 I'M NOT QUITE SUREI CAN'T RECALL 7469 04:49:05,757 --> 04:49:08,126 HOW MUCH INTERACTION WE HAD WITH 7470 04:49:08,126 --> 04:49:10,028 SOME PROFESSIONAL SOCIETIES TO 7471 04:49:10,028 --> 04:49:14,632 HELP SPREAD THE WORD ON THAT. 7472 04:49:14,632 --> 04:49:16,634 AND SO YOU'RE RIGHT, MAYBE THERE 7473 04:49:16,634 --> 04:49:18,469 WAS MISSED OPPORTUNITIES THERE. 7474 04:49:18,469 --> 04:49:20,104 I KNOW THE NICHD DIRECTOR CAME 7475 04:49:20,104 --> 04:49:23,508 OUT AND DID A BLOG ON THE TOPIC 7476 04:49:23,508 --> 04:49:25,376 AS WELL. 7477 04:49:25,376 --> 04:49:29,580 SO IT'S THAT HANDOFF IN TERMS OF 7478 04:49:29,580 --> 04:49:31,182 RESEARCH TO CLINICAL CARE, BUT 7479 04:49:31,182 --> 04:49:34,919 I'M GLAD TO SEE MEGHAN AND NICHD 7480 04:49:34,919 --> 04:49:35,887 BROUGHT IT UP AGAIN. 7481 04:49:35,887 --> 04:49:37,522 WE TRY TO BRING IT UP. 7482 04:49:37,522 --> 04:49:41,259 UNFORTUNATELY THE NETWORK IS NO 7483 04:49:41,259 --> 04:49:42,126 LONGER FUNDED. 7484 04:49:42,126 --> 04:49:43,761 HOWEVER, PAPERS ARE STILL COMING 7485 04:49:43,761 --> 04:49:45,396 OUT FROM INVESTIGATORS, AS WELL 7486 04:49:45,396 --> 04:49:49,567 AS THE DATA NOW BEING AVAILABLE 7487 04:49:49,567 --> 04:49:51,135 ON NICHD'S DASH REPOSITORY FOR 7488 04:49:51,135 --> 04:49:52,103 OTHER INVESTIGATORS TO COME IN 7489 04:49:52,103 --> 04:49:55,373 AND DO THEIR OWN ANALYSES. 7490 04:49:55,373 --> 04:49:57,375 MEGHAN, I DON'T KNOW IF YOU HAD 7491 04:49:57,375 --> 04:49:58,576 ANY COMMENTS THERE. 7492 04:49:58,576 --> 04:50:01,879 >> YEAH, I DON'T HAVE TOO MUCH 7493 04:50:01,879 --> 04:50:05,616 TO ADD BEING NEW BUT I THINK 7494 04:50:05,616 --> 04:50:08,319 THERE'S ALSO JUST WITHIN NICHD, 7495 04:50:08,319 --> 04:50:09,554 SINCE BEING HERE SEEMS LIKE 7496 04:50:09,554 --> 04:50:12,056 THERE'S A PUSH ALSO TO MOVE MORE 7497 04:50:12,056 --> 04:50:16,094 INTO THE DISSEMINATION AND 7498 04:50:16,094 --> 04:50:17,762 IMPLEMENT SPACE. 7499 04:50:17,762 --> 04:50:19,163 I'M A CLINICIAN, MYSELF, AT 7500 04:50:19,163 --> 04:50:21,265 HEART BEFORE COMING TO THE NIH 7501 04:50:21,265 --> 04:50:22,667 AND I THINK THAT SOMETIMES THE 7502 04:50:22,667 --> 04:50:24,735 MISSING VOID OF HOW DO WE JUST 7503 04:50:24,735 --> 04:50:27,004 WHAT YOU SAID, HOW DO WE GET 7504 04:50:27,004 --> 04:50:28,906 RESEARCH OUT THERE, SO THAT 7505 04:50:28,906 --> 04:50:31,209 PEOPLE IN THE PUBLIC AND 7506 04:50:31,209 --> 04:50:32,110 CLINICIAN, PRACTITIONERS, 7507 04:50:32,110 --> 04:50:33,177 UNDERSTAND IT. 7508 04:50:33,177 --> 04:50:34,812 I THINK THERE'S MORE INTEREST 7509 04:50:34,812 --> 04:50:39,183 NOW AT THE NICHD AND SOME OF 7510 04:50:39,183 --> 04:50:40,718 THOSE INITIATIVES THAN PERHAPS 7511 04:50:40,718 --> 04:50:45,590 SOME OF THE REALLY VALUABLE DATA 7512 04:50:45,590 --> 04:50:46,858 THAT WE ACCRUED THROUGH SAFE 7513 04:50:46,858 --> 04:50:49,827 PASSAGE STUDY CAN BE PART OF THE 7514 04:50:49,827 --> 04:50:53,197 EFFORTS MOVING FORWARD. 7515 04:50:53,197 --> 04:50:57,135 BUT I THINK -- I HOPE AT LEAST 7516 04:50:57,135 --> 04:51:00,638 CREATION OF DATA HUB AND 7517 04:51:00,638 --> 04:51:03,241 BIOSPECIMEN UNIT WILL KEEP THIS 7518 04:51:03,241 --> 04:51:04,909 VALUABLE STUDY ALIVE IN SOME 7519 04:51:04,909 --> 04:51:06,444 WAYS, AND ALL THAT WAS LEARNED 7520 04:51:06,444 --> 04:51:08,412 FROM IT, THERE'S GOING TO BE 7521 04:51:08,412 --> 04:51:14,752 MORE LEARNED FROM IT AND IT 7522 04:51:14,752 --> 04:51:16,387 DOESN'T SUBSIDE TO UNTIL THE 7523 04:51:16,387 --> 04:51:18,923 DATA CHECK PART IS OVER. 7524 04:51:18,923 --> 04:51:20,791 >> I WOULD ENCOURAGE YOU TO 7525 04:51:20,791 --> 04:51:22,994 THINK ABOUT GETTING IT OUT 7526 04:51:22,994 --> 04:51:25,263 BECAUSE I'LL TELL YOU, I'M ONLY 7527 04:51:25,263 --> 04:51:28,099 ONE THAT EVER KNOWS ABOUT IT, 7528 04:51:28,099 --> 04:51:31,102 I'VE BEEN CHALLENGED BY 7529 04:51:31,102 --> 04:51:31,502 PHYSICIANS. 7530 04:51:31,502 --> 04:51:32,737 THAT'S NOT TRUE! 7531 04:51:32,737 --> 04:51:35,473 AND FORTUNATELY I HAD KEN WARREN 7532 04:51:35,473 --> 04:51:37,975 ON TAPE TALKING ABOUT IT. 7533 04:51:37,975 --> 04:51:39,510 LIKE, WELL, IF YOU WANT TO HEAR 7534 04:51:39,510 --> 04:51:44,649 ABOUT IT, YOU CAN HEAR DR. KIM 7535 04:51:44,649 --> 04:51:46,184 WARREN TALK ABOUT IT. 7536 04:51:46,184 --> 04:51:47,585 IT'S A SHAME BECAUSE THIS IS 7537 04:51:47,585 --> 04:51:49,353 STILL HAPPENING. 7538 04:51:49,353 --> 04:51:51,189 IT'S A TERRIBLE THING TO GO 7539 04:51:51,189 --> 04:51:53,524 THROUGH. 7540 04:51:53,524 --> 04:51:54,258 WE CAN DO BETTER. 7541 04:51:54,258 --> 04:51:56,027 YOU KNOW, THE GREATEST THING 7542 04:51:56,027 --> 04:51:57,228 ABOUT GETTING OLD AND BEING PART 7543 04:51:57,228 --> 04:52:01,065 OF THIS IS I GET TO JUST SPEAK 7544 04:52:01,065 --> 04:52:03,334 MY MIND BECAUSE WE SHOULDN'T LET 7545 04:52:03,334 --> 04:52:05,436 THAT RESEARCH, ALL THAT MONEY, 7546 04:52:05,436 --> 04:52:07,071 ALL THOSE YEARS, JUST GO 7547 04:52:07,071 --> 04:52:09,373 SOMEWHERE, WHEN THIS IS STILL A 7548 04:52:09,373 --> 04:52:09,707 THING. 7549 04:52:09,707 --> 04:52:12,977 IT IS STILL HAPPENING TO PEOPLE. 7550 04:52:12,977 --> 04:52:13,177 OFTEN. 7551 04:52:13,177 --> 04:52:15,479 SO WE SHOULD REALLY THINK ABOUT 7552 04:52:15,479 --> 04:52:19,217 HOW TO CHURN THAT OUT. 7553 04:52:19,217 --> 04:52:22,486 >> THANK YOU FOR BRINGING IT UP. 7554 04:52:22,486 --> 04:52:23,487 VERY IMPORTANT POINT. 7555 04:52:23,487 --> 04:52:24,889 WE APPRECIATE YOU BRINGING UP 7556 04:52:24,889 --> 04:52:25,756 THE STUDY. 7557 04:52:25,756 --> 04:52:29,493 AGAIN, I CAN TELL WHEN I READ 7558 04:52:29,493 --> 04:52:32,597 THE PAPER I WAS ACTUALLY 7559 04:52:32,597 --> 04:52:36,834 SURPRISED. 7560 04:52:36,834 --> 04:52:39,136 I THINK WE NEED TO BRING IT 7561 04:52:39,136 --> 04:52:39,337 BACK. 7562 04:52:39,337 --> 04:52:41,105 WE'RE SITTING AROUND THE SAME 7563 04:52:41,105 --> 04:52:43,808 TABLE, PARTLY BECAUSE STUDY WAS 7564 04:52:43,808 --> 04:52:46,210 PRIMARY NICHD STUDY AND RESULT 7565 04:52:46,210 --> 04:52:49,413 WAS RELATED TO ALCOHOL, THIS IS 7566 04:52:49,413 --> 04:52:52,250 WHY MAYBE THERE'S DISCONNECT 7567 04:52:52,250 --> 04:52:56,954 BETWEEN PUBLIC -- BRINGING THIS 7568 04:52:56,954 --> 04:52:59,257 TO PUBLIC BETWEEN TWO 7569 04:52:59,257 --> 04:52:59,657 INSTITUTES. 7570 04:52:59,657 --> 04:53:02,860 GLAD WE BROUGHT IT BACK. 7571 04:53:02,860 --> 04:53:05,296 UNIQUE STUDY, GREAT TO HEAR 7572 04:53:05,296 --> 04:53:05,730 THIS. 7573 04:53:05,730 --> 04:53:06,931 >> INCREASE TO MATERNAL HEALTH, 7574 04:53:06,931 --> 04:53:08,332 THIS IS A MATERNAL HEALTH ISSUE 7575 04:53:08,332 --> 04:53:11,736 AS WELL AS KATHY POINTS OUT, 7576 04:53:11,736 --> 04:53:12,937 DEVASTATING FOR PARENTS. 7577 04:53:12,937 --> 04:53:14,705 THERE'S AN OPPORTUNITY TO 7578 04:53:14,705 --> 04:53:15,773 REPUBLICIZE THIS AND TO SEE IF 7579 04:53:15,773 --> 04:53:18,075 WE CAN'T GET IT OUT MORE 7580 04:53:18,075 --> 04:53:18,309 BROADLY. 7581 04:53:18,309 --> 04:53:21,712 THANK YOU FOR THAT. 7582 04:53:21,712 --> 04:53:23,214 I'D LIKE TO ASK OUR AGENCIES 7583 04:53:23,214 --> 04:53:25,416 AROUND THE TABLE AS WELL AS OUR 7584 04:53:25,416 --> 04:53:29,587 AUDIENCE TO THINK ABOUT YOU'VE 7585 04:53:29,587 --> 04:53:31,222 GOT MORE RESEARCH INSTITUTE FROM 7586 04:53:31,222 --> 04:53:34,158 NIH AT YOUR BECK AND CALL HERE 7587 04:53:34,158 --> 04:53:35,593 LISTENING TO YOU. 7588 04:53:35,593 --> 04:53:37,762 IS THERE RESEARCH YOU WOULD LIKE 7589 04:53:37,762 --> 04:53:41,499 TO SEE THAT WOULD MAKE HUGE 7590 04:53:41,499 --> 04:53:42,066 DIFFERENCES MOVING FORWARD 7591 04:53:42,066 --> 04:53:45,002 EITHER IN BEING ABLE TO 7592 04:53:45,002 --> 04:53:47,071 PUBLICIZE THIS, IN HELPING 7593 04:53:47,071 --> 04:53:49,240 INDIVIDUALS WITH LIVED 7594 04:53:49,240 --> 04:53:53,644 EXPERIENCE, IN HELPING FAMILIES, 7595 04:53:53,644 --> 04:53:57,481 OR IN PREVENTING FASD. 7596 04:53:57,481 --> 04:53:59,350 >> ALL RIGHT, QUESTION TO 7597 04:53:59,350 --> 04:53:59,617 EVERYBODY. 7598 04:53:59,617 --> 04:54:01,552 THANK YOU, GREAT QUESTION. 7599 04:54:01,552 --> 04:54:04,822 DO WE HAVE ANY COMMENTS FROM 7600 04:54:04,822 --> 04:54:05,089 VIDEOCAST? 7601 04:54:05,089 --> 04:54:10,828 IT TAKES SOME TIME BETWEEN US 7602 04:54:10,828 --> 04:54:12,163 AND VIDEOCAST. 7603 04:54:12,163 --> 04:54:12,930 GO AHEAD. 7604 04:54:12,930 --> 04:54:14,231 >> YOU'RE PROBABLY TIRED OF 7605 04:54:14,231 --> 04:54:18,069 HEARING FROM ME, I HOPE I'M 7606 04:54:18,069 --> 04:54:19,170 STAYED ON TOPIC. 7607 04:54:19,170 --> 04:54:21,872 I WOULD REALLY, REALLY LOVE TO 7608 04:54:21,872 --> 04:54:25,609 SEE LIFE TRAJECTORIES IN 7609 04:54:25,609 --> 04:54:27,011 POSITIVE WAYS FOR PEOPLE AND 7610 04:54:27,011 --> 04:54:28,779 LIFE TRAJECTORIES OF PEOPLE WITH 7611 04:54:28,779 --> 04:54:31,282 FASD WHO LIVE WITH BIRTH 7612 04:54:31,282 --> 04:54:31,515 PARENTS. 7613 04:54:31,515 --> 04:54:33,117 I THINK IT'S REALLY OVERLOOKED 7614 04:54:33,117 --> 04:54:35,353 AND A LOT OF THEM ARE THERE. 7615 04:54:35,353 --> 04:54:39,290 I DO NOT LIVE WITH MY BIRTH MOM. 7616 04:54:39,290 --> 04:54:41,692 I LIVE WITH MY MOM I HAVE NOW, 7617 04:54:41,692 --> 04:54:42,793 HAVE ALWAYS HAD. 7618 04:54:42,793 --> 04:54:45,496 YOU KNOW WHAT I MEAN. 7619 04:54:45,496 --> 04:54:47,398 I THINK THERE SHOULD BE MORE 7620 04:54:47,398 --> 04:54:50,234 POSITIVE REPRESENTATION AND I 7621 04:54:50,234 --> 04:54:51,869 THINK THERE SHOULD BE -- I'M 7622 04:54:51,869 --> 04:54:55,172 GOING TO BUTCHER THE WORD, 7623 04:54:55,172 --> 04:54:57,975 LONGITUDINAL STUDY. 7624 04:54:57,975 --> 04:54:59,977 I DID IT. 7625 04:54:59,977 --> 04:55:04,648 ON HEALTH OUTCOMES OF BOTH. 7626 04:55:04,648 --> 04:55:06,083 >> ALL RIGHT. 7627 04:55:06,083 --> 04:55:07,084 THANK YOU, CJ. 7628 04:55:07,084 --> 04:55:11,822 WE DO WANT TO HEAR YOU. 7629 04:55:11,822 --> 04:55:13,557 ANYBODY ELSE? 7630 04:55:13,557 --> 04:55:17,561 JAN I DON'T SEE NOW. 7631 04:55:17,561 --> 04:55:20,564 OKAY. 7632 04:55:20,564 --> 04:55:21,999 >> I DON'T THINK I'M GOING TO 7633 04:55:21,999 --> 04:55:23,934 ANSWER YOUR QUESTION EXACTLY BUT 7634 04:55:23,934 --> 04:55:26,504 I THINK ONE OF THE BIG MISSING 7635 04:55:26,504 --> 04:55:29,106 LINKS IN ALL OF WHAT WE'RE DOING 7636 04:55:29,106 --> 04:55:33,944 RELATIVE TO RESEARCH IS TO 7637 04:55:33,944 --> 04:55:38,082 RECOGNIZE THAT PEOPLE FROM THE 7638 04:55:38,082 --> 04:55:41,051 MIDDLE CLASS AND ABOVE DRINK 7639 04:55:41,051 --> 04:55:44,855 MORE ALCOHOL THAN PEOPLE IN THE 7640 04:55:44,855 --> 04:55:45,756 LOWER CLASS. 7641 04:55:45,756 --> 04:55:47,591 AND THEREFORE I THINK IT GOES 7642 04:55:47,591 --> 04:55:49,994 WITHOUT SAYING THAT THERE ARE 7643 04:55:49,994 --> 04:55:52,863 MORE CHILDREN BORN WITH THE 7644 04:55:52,863 --> 04:55:55,466 FETAL ALCOHOL SPECTRUM DISORDER 7645 04:55:55,466 --> 04:55:57,334 IN THE UPPER CLASS AND MIDDLE 7646 04:55:57,334 --> 04:56:00,938 CLASS THAN IN THE LOWER CLASSES. 7647 04:56:00,938 --> 04:56:04,341 AND MOST OF THE RESEARCH THAT IS 7648 04:56:04,341 --> 04:56:09,346 GOING ON TODAY IS FOCUSED ON 7649 04:56:09,346 --> 04:56:13,317 PEOPLE WHO ARE RELATIVELY 7650 04:56:13,317 --> 04:56:14,018 UNEDUCATED FROM LOWER 7651 04:56:14,018 --> 04:56:19,457 SOCIOECONOMIC GROUPS, AND I 7652 04:56:19,457 --> 04:56:24,361 THINK WE'RE MISSING THE MAJOR, 7653 04:56:24,361 --> 04:56:27,865 MAJOR CONTRIBUTION, ONE HUGE 7654 04:56:27,865 --> 04:56:29,166 CLASS IN OUR COUNTRY. 7655 04:56:29,166 --> 04:56:30,501 I GIVES TALKS AROUND SOUTHERN 7656 04:56:30,501 --> 04:56:32,470 CALIFORNIA AND I SEE IN WOMEN'S 7657 04:56:32,470 --> 04:56:36,507 GROUPS AND SO FORTH, I SEE AS 7658 04:56:36,507 --> 04:56:38,809 I'M TALKING WOMEN WHISPER TO 7659 04:56:38,809 --> 04:56:41,445 EACH OTHER, SAYING, THANK GOD 7660 04:56:41,445 --> 04:56:43,514 THIS ISN'T US. 7661 04:56:43,514 --> 04:56:45,516 AND WE'RE REALLY MISSING A HUGE 7662 04:56:45,516 --> 04:56:46,350 GROUP. 7663 04:56:46,350 --> 04:56:48,886 >> I THINK THAT'S A GREAT POINT. 7664 04:56:48,886 --> 04:56:50,654 THERE HAVE BEEN STUDIES, YOU 7665 04:56:50,654 --> 04:56:54,124 KNOW, TO SHARON'S POINT ABOUT 7666 04:56:54,124 --> 04:56:55,226 OVERSURVEILLANCE AND THERE WAS 7667 04:56:55,226 --> 04:56:57,261 ANOTHER V.A. STUDY THAT BLACK 7668 04:56:57,261 --> 04:57:00,531 MEN GET A DIAGNOSED OF ALCOHOL 7669 04:57:00,531 --> 04:57:03,167 USE DISORDER WITH LOWER SYMPTOM 7670 04:57:03,167 --> 04:57:04,468 SEVERITY THAN WHITE MEN. 7671 04:57:04,468 --> 04:57:07,404 THE NEGATIVE OF THAT IS THE 7672 04:57:07,404 --> 04:57:07,905 STIGMA. 7673 04:57:07,905 --> 04:57:09,840 THE POSITIVE IS THAT THEY MAY 7674 04:57:09,840 --> 04:57:12,343 GET HELP QUICKER SO WHAT WE NEED 7675 04:57:12,343 --> 04:57:15,012 TO DO IS NORMALIZE THE 7676 04:57:15,012 --> 04:57:17,248 CONVERSATION AROUND ALCOHOL SO 7677 04:57:17,248 --> 04:57:19,250 THAT EVERYBODY'S ASKED, EVERY 7678 04:57:19,250 --> 04:57:20,885 GETS HELP, AND THE SERVICES ARE 7679 04:57:20,885 --> 04:57:21,151 PROVIDED. 7680 04:57:21,151 --> 04:57:25,789 SO I THINK IT'S A GREAT POINT 7681 04:57:25,789 --> 04:57:28,759 THAT UNFORTUNATELY ALCOHOL IS 7682 04:57:28,759 --> 04:57:30,261 THAT EQUAL OPPORTUNITY NEGATIVE, 7683 04:57:30,261 --> 04:57:32,897 BUT WE COULD TURN THIS SO 7684 04:57:32,897 --> 04:57:33,931 EVERYBODY GETS ASKED, EVERYBODY 7685 04:57:33,931 --> 04:57:38,869 GETS HELP, SO IT'S NOT THE 7686 04:57:38,869 --> 04:57:39,236 NEGATIVE. 7687 04:57:39,236 --> 04:57:41,238 >> THANK YOU. 7688 04:57:41,238 --> 04:57:43,173 WE HAVE HANDS UP. 7689 04:57:43,173 --> 04:57:43,340 JAN? 7690 04:57:43,340 --> 04:57:47,111 >> CAN I ADD BEFORE THE NEXT 7691 04:57:47,111 --> 04:57:47,378 QUESTION? 7692 04:57:47,378 --> 04:57:50,614 >> JAN JUST ONE SECOND. 7693 04:57:50,614 --> 04:57:51,382 >> KEN, YOU'RE RIGHT. 7694 04:57:51,382 --> 04:57:56,353 WE NEED TO GET THAT WORD OUT. 7695 04:57:56,353 --> 04:58:00,124 I THINK IT WAS YESTERDAY SHOWING 7696 04:58:00,124 --> 04:58:05,596 SOME HBCD DATA AND DATA SHOWS 7697 04:58:05,596 --> 04:58:07,898 DRY BLOODSPOT POSITIVITY FOR 7698 04:58:07,898 --> 04:58:09,633 BIOMARKERS AROUND 18% IN THE 7699 04:58:09,633 --> 04:58:10,434 HBCD STUDY. 7700 04:58:10,434 --> 04:58:14,171 THAT GOT ME TO LOOK AT SOME 7701 04:58:14,171 --> 04:58:19,176 OLDER STUDIES BY LUDMILLA 7702 04:58:19,176 --> 04:58:20,945 BAKRAVA, MIRANDA, LOOKING AT 7703 04:58:20,945 --> 04:58:22,780 BLOODSPOT CARDS ACROSS TEXTS, 7704 04:58:22,780 --> 04:58:23,914 INCIDENCE OF BIOMARKERS FOR 7705 04:58:23,914 --> 04:58:25,749 ALCOHOL EXPOSURE. 7706 04:58:25,749 --> 04:58:27,051 THEY SEE REGIONAL DIFFERENCES. 7707 04:58:27,051 --> 04:58:32,122 ONE OF THE THINGS THAT WAS IN 7708 04:58:32,122 --> 04:58:34,925 THAT PAPER WAS MOSTLY URBAN 7709 04:58:34,925 --> 04:58:37,428 HIGH/MEDIAN INCOME REGIONS HAD 7710 04:58:37,428 --> 04:58:40,297 THE HIGHEST PREVALENCE, AT LEAST 7711 04:58:40,297 --> 04:58:42,933 THIS BIOMARKER IN DRY BLOODSPOT 7712 04:58:42,933 --> 04:58:44,234 CARDS. 7713 04:58:44,234 --> 04:58:47,738 THERE ARE OTHER STUDIES THAT 7714 04:58:47,738 --> 04:58:48,906 ALSO SUPPORT THAT, YEAH. 7715 04:58:48,906 --> 04:58:52,209 >> ALL RIGHT. 7716 04:58:52,209 --> 04:58:52,977 THANK YOU. 7717 04:58:52,977 --> 04:58:55,279 JAN, YOU CAN GO AHEAD. 7718 04:58:55,279 --> 04:58:57,247 >> I WOULD LIKE TO ECHO WHAT DR. 7719 04:58:57,247 --> 04:58:59,450 JONES SAID AND WHAT BILL SAID 7720 04:58:59,450 --> 04:59:00,751 BECAUSE I THINK IT'S REALLY 7721 04:59:00,751 --> 04:59:03,687 IMPORTANT AND WE ARE MISSING 7722 04:59:03,687 --> 04:59:07,758 WHERE A LARGE NUMBER OF PEOPLE 7723 04:59:07,758 --> 04:59:10,160 WITH ALCOHOL USE DISORDERS OR 7724 04:59:10,160 --> 04:59:12,563 EVEN JUST HOW YOU DEFINE A 7725 04:59:12,563 --> 04:59:14,098 DISORDER DOESN'T SIT WITH THEM, 7726 04:59:14,098 --> 04:59:16,400 THEY DON'T SEE THEMSELVES THAT 7727 04:59:16,400 --> 04:59:17,835 WAY. 7728 04:59:17,835 --> 04:59:20,004 WHEN YOU HAVE FINANCIAL 7729 04:59:20,004 --> 04:59:21,305 RESOURCES THEN YOU CAN HIDE A 7730 04:59:21,305 --> 04:59:22,306 LOT OF THINGS. 7731 04:59:22,306 --> 04:59:23,741 YOUR CHILDREN ARE WELL FED. 7732 04:59:23,741 --> 04:59:24,842 THEY ARE DRESSED. 7733 04:59:24,842 --> 04:59:26,810 THEY GO TO SCHOOL. 7734 04:59:26,810 --> 04:59:27,778 THERE ARE NOT HOMELESS. 7735 04:59:27,778 --> 04:59:30,080 ALL OF THOSE OTHER PIECES ARE 7736 04:59:30,080 --> 04:59:30,681 NOT THERE. 7737 04:59:30,681 --> 04:59:32,916 AND AS LONG AS WE CONTINUE TO 7738 04:59:32,916 --> 04:59:36,086 LOOK AT THIS AS AN US AND THEM 7739 04:59:36,086 --> 04:59:43,761 PIECE, WE'RE IN HUGE TROUBLE. 7740 04:59:43,761 --> 04:59:46,163 UNTIL WE DEAL WITH -- STIGMA IS 7741 04:59:46,163 --> 04:59:48,132 SUCH A COMPLICATED PROBLEM, IT 7742 04:59:48,132 --> 04:59:49,800 GOES BACK TO FAR MORE THAN JUST 7743 04:59:49,800 --> 04:59:53,003 WHAT WE'RE TALKING ABOUT. 7744 04:59:53,003 --> 04:59:57,808 IT'S THE UNSPOKEN VALUES BIAS 7745 04:59:57,808 --> 04:59:58,776 AND BELIEFS THEY DON'T THINK 7746 04:59:58,776 --> 04:59:59,910 THEY ARE APPLYING UNTIL IT COMES 7747 04:59:59,910 --> 05:00:02,413 TO SOMETHING LIKE THIS. 7748 05:00:02,413 --> 05:00:04,014 I JUST REALLY STRONGLY THINK 7749 05:00:04,014 --> 05:00:05,049 THAT WE NEED TO TAKE ANOTHER 7750 05:00:05,049 --> 05:00:08,118 LOOK AT SOME OF THIS AND WE NEED 7751 05:00:08,118 --> 05:00:12,056 TO SAY HOW DO WOMEN WHO HAVE HAD 7752 05:00:12,056 --> 05:00:14,658 HAD A CHILD ARE FASD AND PARENTS 7753 05:00:14,658 --> 05:00:17,061 OR MOTHERS WHO HAVE ADOPTED A 7754 05:00:17,061 --> 05:00:18,929 CHILD WITH FASD WORK TOGETHER, 7755 05:00:18,929 --> 05:00:21,231 WHY ARE THEY TWO SEPARATE 7756 05:00:21,231 --> 05:00:21,565 GROUPS? 7757 05:00:21,565 --> 05:00:25,436 WHY CAN WE NOT FIGURE OUT HOW TO 7758 05:00:25,436 --> 05:00:27,371 BE US, ALL OF US ARE US. 7759 05:00:27,371 --> 05:00:29,006 THERE IS NO THEM. 7760 05:00:29,006 --> 05:00:32,976 I HAVE A CLOSE FRIEND WHO IS THE 7761 05:00:32,976 --> 05:00:34,812 BIRTH PARENT, HER SON IS NOW 7762 05:00:34,812 --> 05:00:36,914 ADULT, BUT WHEN SHE WENT TO HER 7763 05:00:36,914 --> 05:00:39,850 FAMILY DOCTOR A FEW YEARS AGO, 7764 05:00:39,850 --> 05:00:42,052 SEEKING HELP FOR REFERRAL FOR 7765 05:00:42,052 --> 05:00:43,821 HER SON, HE WOULDN'T EVEN 7766 05:00:43,821 --> 05:00:44,788 DISCUSS ALCOHOL WITH HER. 7767 05:00:44,788 --> 05:00:46,857 HE SAID WHEN SHE BROUGHT IT UP 7768 05:00:46,857 --> 05:00:48,726 TO HIM, HE SAID, THIS IS WITHIN 7769 05:00:48,726 --> 05:00:50,461 THE LAST SIX YEARS, HE SAID 7770 05:00:50,461 --> 05:00:51,995 WELL, YOU'RE NOT ONE OF THOSE 7771 05:00:51,995 --> 05:00:53,831 WOMEN, WE DON'T NEED TO TALK 7772 05:00:53,831 --> 05:00:54,732 ABOUT THIS. 7773 05:00:54,732 --> 05:00:57,801 IT WAS VERY MUCH -- IT'S WHO ARE 7774 05:00:57,801 --> 05:00:59,770 THOSE WOMEN, HOW DID WE GET 7775 05:00:59,770 --> 05:01:00,204 THERE? 7776 05:01:00,204 --> 05:01:03,941 HOW DID WE GET THERE? 7777 05:01:03,941 --> 05:01:06,443 BECAUSE THEY ARE US. 7778 05:01:06,443 --> 05:01:09,413 WE'RE ALL THOSE WOMEN. 7779 05:01:09,413 --> 05:01:12,349 IT'S JUST -- PLEASE, CAN WE 7780 05:01:12,349 --> 05:01:14,551 FIGURE OUT HOW TO DO THIS 7781 05:01:14,551 --> 05:01:16,186 BECAUSE AS LONG AS WE ONLY LOOK 7782 05:01:16,186 --> 05:01:20,257 IN CERTAIN PLACES WE CAN 7783 05:01:20,257 --> 05:01:21,458 MAINTAIN THE THEM PIECE, WHICH 7784 05:01:21,458 --> 05:01:23,427 WE CAN'T WHEN WE LOOK AT US. 7785 05:01:23,427 --> 05:01:25,829 >> WELL, YOU JUST SAID IT. 7786 05:01:25,829 --> 05:01:27,131 WE'VE GOT TO NORMALIZE IT. 7787 05:01:27,131 --> 05:01:28,599 KATHY WAS TALKING ABOUT IT A 7788 05:01:28,599 --> 05:01:29,767 WHILE AGO AS WELL. 7789 05:01:29,767 --> 05:01:31,401 I THINK THAT WE NEED TO LOOK AT 7790 05:01:31,401 --> 05:01:33,504 THIS DISORDER IN A TOTALLY 7791 05:01:33,504 --> 05:01:35,773 DIFFERENT WAY, WE NEED TO CHANGE 7792 05:01:35,773 --> 05:01:38,075 THE CULTURE OF THIS DISORDER. 7793 05:01:38,075 --> 05:01:40,711 YOU KNOW, WE TALK ABOUT ALCOHOL 7794 05:01:40,711 --> 05:01:43,981 ALL THE TIME. 7795 05:01:43,981 --> 05:01:45,115 BILL, WILL YOU GO HAVE A BEER 7796 05:01:45,115 --> 05:01:46,416 WITH ME AFTER WORK? 7797 05:01:46,416 --> 05:01:49,153 IT'S PART OF OUR EVERYDAY LIFE. 7798 05:01:49,153 --> 05:01:52,422 WHEN WE TALK ABOUT ALCOHOL IN 7799 05:01:52,422 --> 05:01:53,957 TERMS OF PREGNANCY, EVERYTHING 7800 05:01:53,957 --> 05:01:56,493 IS MOM, NOBODY SAYS A WORD ABOUT 7801 05:01:56,493 --> 05:01:56,794 IT. 7802 05:01:56,794 --> 05:01:57,795 EVERYTHING IS MUM. 7803 05:01:57,795 --> 05:02:02,299 WHEN YOU SEE A WOMAN CLEARLY 7804 05:02:02,299 --> 05:02:04,468 VERY PREGNANT STANDING THERE AT 7805 05:02:04,468 --> 05:02:05,469 BAR DRINKING ALCOHOL, NOBODY 7806 05:02:05,469 --> 05:02:07,004 WOULD CONCEIVE OF GOING UP TO 7807 05:02:07,004 --> 05:02:08,338 HER AND SAYING SOMETHING ABOUT 7808 05:02:08,338 --> 05:02:08,539 IT. 7809 05:02:08,539 --> 05:02:10,140 WE REALLY HAVE TO CHANGE THE 7810 05:02:10,140 --> 05:02:13,577 CULTURE AS FAR AS THIS DISORDER 7811 05:02:13,577 --> 05:02:14,878 IS CONCERNED. 7812 05:02:14,878 --> 05:02:19,249 AND OBVIOUSLY HOW TO DO THAT IS 7813 05:02:19,249 --> 05:02:20,250 ANOTHER STORY. 7814 05:02:20,250 --> 05:02:22,219 >> ONE ADDITION TO THAT, THE 7815 05:02:22,219 --> 05:02:24,521 BIGGEST, THE TOP QUESTION WE 7816 05:02:24,521 --> 05:02:27,691 ALWAYS GET, WHAT ABOUT THE DADS? 7817 05:02:27,691 --> 05:02:31,528 PATERNAL EFFECTS HAVE NEVER EVEN 7818 05:02:31,528 --> 05:02:32,396 BEEN REALLY THOROUGHLY 7819 05:02:32,396 --> 05:02:33,297 INVESTIGATED, AND, AGAIN, I'VE 7820 05:02:33,297 --> 05:02:35,232 HAD PEOPLE STAND UP AND GO, WHO 7821 05:02:35,232 --> 05:02:35,799 TOLD YOU THAT? 7822 05:02:35,799 --> 05:02:38,535 IT MUST HAVE BEEN A GROUP OF 7823 05:02:38,535 --> 05:02:38,735 MEN. 7824 05:02:38,735 --> 05:02:41,705 YOU KNOW, THERE IS AN 7825 05:02:41,705 --> 05:02:42,940 IMPLICATION THAT, YOU KNOW, THIS 7826 05:02:42,940 --> 05:02:44,441 IS ALL ABOUT THE MOMS. 7827 05:02:44,441 --> 05:02:47,377 WHEN WE TALK ABOUT US AND THEM, 7828 05:02:47,377 --> 05:02:48,946 THIS IS ALL THE MOM. 7829 05:02:48,946 --> 05:02:51,248 WELL, WHAT IF IT WASN'T? 7830 05:02:51,248 --> 05:02:53,183 WHAT IF THERE WERE PATERNAL 7831 05:02:53,183 --> 05:02:55,285 EFFECTS WE HAVEN'T EVEN 7832 05:02:55,285 --> 05:02:55,786 UNDERSTOOD? 7833 05:02:55,786 --> 05:02:58,455 YOU KNOW, I'M JUST SAYING. 7834 05:02:58,455 --> 05:02:59,756 YES, FOR RESEARCH. 7835 05:02:59,756 --> 05:03:01,959 >> AND THERE ARE SOME STUDIES 7836 05:03:01,959 --> 05:03:04,895 THAT ARE SUGGESTED POSSIBLE 7837 05:03:04,895 --> 05:03:05,495 PATERNAL EFFECTS, SO -- 7838 05:03:05,495 --> 05:03:10,367 >> EVERY TIME I SEE THEM, I'LL 7839 05:03:10,367 --> 05:03:14,204 CHECK WITH ED RILEY, IS THIS 7840 05:03:14,204 --> 05:03:14,571 LEGIT? 7841 05:03:14,571 --> 05:03:14,972 TALK TO ME. 7842 05:03:14,972 --> 05:03:16,640 I WANT TO TALK ABOUT RESEARCH, 7843 05:03:16,640 --> 05:03:17,307 THAT'S ACCURATE. 7844 05:03:17,307 --> 05:03:19,877 HE WILL COME BACK AND GIVE ME 7845 05:03:19,877 --> 05:03:21,211 TYPICALLY THE REASONS WHY MMM, 7846 05:03:21,211 --> 05:03:22,946 NO, I'M GOING TO TELL YOU WHAT'S 7847 05:03:22,946 --> 05:03:25,015 WRONG WITH THAT STUDY, OR THIS 7848 05:03:25,015 --> 05:03:34,658 AND THAT. 7849 05:03:34,658 --> 05:03:37,494 I TRUST, YOU KNOW, TO DIRECT, WE 7850 05:03:37,494 --> 05:03:41,565 DO NEED A BETTER UNDERSTANDING. 7851 05:03:41,565 --> 05:03:45,235 >> WE'RE FUNDING AN R01, MIKE 7852 05:03:45,235 --> 05:03:47,604 GOLDING AT TEXAS A & M IS AN 7853 05:03:47,604 --> 05:03:48,705 ANIMAL RESEARCHERS, HE'S JUST 7854 05:03:48,705 --> 05:03:50,440 STARTING TO PUBLISH DATA THAT 7855 05:03:50,440 --> 05:03:52,943 SUGGESTS THERE ARE PATERNAL 7856 05:03:52,943 --> 05:03:54,611 CONTRIBUTIONS IN THE AREAS OF 7857 05:03:54,611 --> 05:03:55,913 ALCOHOL INDUCE THE BIRTH 7858 05:03:55,913 --> 05:04:00,951 DEFECTS, HE HAS A UNIQUE MODEL 7859 05:04:00,951 --> 05:04:04,354 LOOKING AT ALCOHOL EXPOSURE IN 7860 05:04:04,354 --> 05:04:05,656 MICE, PATERNAL, MATERNAL, AND 7861 05:04:05,656 --> 05:04:07,724 COMBINATION WHEN YOU'VE GOT TWO 7862 05:04:07,724 --> 05:04:09,359 MICE THAT HAVE ALCOHOL EXPOSURE. 7863 05:04:09,359 --> 05:04:11,028 AND SO SOME OF HIS DATA IS JUST 7864 05:04:11,028 --> 05:04:13,096 STARTING TO COME OUT. 7865 05:04:13,096 --> 05:04:16,700 I THINK IT NEEDS TO BE 7866 05:04:16,700 --> 05:04:17,601 REPLICATED BY OTHER 7867 05:04:17,601 --> 05:04:18,902 INVESTIGATORS, BUT IT DOES LOOK 7868 05:04:18,902 --> 05:04:24,274 LIKE THERE IS A ROLE FOR DADS 7869 05:04:24,274 --> 05:04:27,010 DRINKING POSSIBLY IN THE 7870 05:04:27,010 --> 05:04:30,380 PHENOTYPE FOR FASD. 7871 05:04:30,380 --> 05:04:31,481 >> SO DAY YOU'LL HAVE DATA. 7872 05:04:31,481 --> 05:04:33,450 >> THAT WOULD BE A GAME CHANGER 7873 05:04:33,450 --> 05:04:36,286 IN STIGMA, WANTING TO LOCK WOMEN 7874 05:04:36,286 --> 05:04:36,753 UP, RIGHT? 7875 05:04:36,753 --> 05:04:37,854 >> ALL RIGHT. 7876 05:04:37,854 --> 05:04:44,895 I ALSO WANTED TO TELL, SPEAKING 7877 05:04:44,895 --> 05:04:48,365 ABOUT STIGMA, BROUGHT UP IN OUR 7878 05:04:48,365 --> 05:04:50,434 MEETING TODAY, I WANTED TO TELL 7879 05:04:50,434 --> 05:04:51,969 ABOUT FUNDING ANNOUNCEMENT 7880 05:04:51,969 --> 05:04:53,837 ISSUED BY OFFICE FOR DISEASE 7881 05:04:53,837 --> 05:04:58,742 PREVENTION AT NIH TOGETHER WITH 7882 05:04:58,742 --> 05:05:02,980 SEVERAL INSTITUTES, INCLUDING 7883 05:05:02,980 --> 05:05:06,750 NIDA, NIAAA, NICHD 7884 05:05:06,750 --> 05:05:07,718 NIMH, ABOUT SCREEN BRIEF 7885 05:05:07,718 --> 05:05:09,252 INTERVENTION REFERRAL FOR 7886 05:05:09,252 --> 05:05:12,322 TREATMENT, THIS ANNOUNCEMENT HAS 7887 05:05:12,322 --> 05:05:15,392 ADDITIONAL TO THIS, IT HAS P AT 7888 05:05:15,392 --> 05:05:17,394 THE END, REFERRAL TO TREATMENT, 7889 05:05:17,394 --> 05:05:19,763 OR PREVENTION. 7890 05:05:19,763 --> 05:05:24,134 AND WHEN WE DISCUSS THIS IN 7891 05:05:24,134 --> 05:05:25,936 ANNOUNCEMENTS ONE OF THE REASONS 7892 05:05:25,936 --> 05:05:28,438 WAS HOW WE CAN ADDRESS STIGMA IN 7893 05:05:28,438 --> 05:05:32,242 AND HOW WE CAN INCREASE 7894 05:05:32,242 --> 05:05:33,243 IMPLEMENTATION OF SCREEN BRIEF 7895 05:05:33,243 --> 05:05:34,544 INTERVENTION TO MAKE IT 7896 05:05:34,544 --> 05:05:38,949 UNIVERSAL AND TO HAVE PHYSICIANS 7897 05:05:38,949 --> 05:05:40,350 OPEN TO SPEAK ABOUT THIS ISSUES 7898 05:05:40,350 --> 05:05:44,154 WITH PATIENTS. 7899 05:05:44,154 --> 05:05:45,922 SO WITH THAT, PREVENTION, 7900 05:05:45,922 --> 05:05:47,257 POSSIBILITY TO ADDRESS THIS, 7901 05:05:47,257 --> 05:05:49,326 PREVENTION COULD BE SOMETHING 7902 05:05:49,326 --> 05:05:50,861 WHICH RELATES TO INCREASING 7903 05:05:50,861 --> 05:05:52,929 ALCOHOL USE BECAUSE OF STRESS, 7904 05:05:52,929 --> 05:05:55,132 BECAUSE OF FAMILY ISSUES, 7905 05:05:55,132 --> 05:05:57,067 BECAUSE OF ANY OTHER CONDITIONS 7906 05:05:57,067 --> 05:06:01,171 WHICH PERSON MAY HAVE. 7907 05:06:01,171 --> 05:06:02,906 WITH THAT, WE'RE VERY 7908 05:06:02,906 --> 05:06:03,607 ENTHUSIASTIC ABOUT THIS 7909 05:06:03,607 --> 05:06:04,741 ADDITIONAL PIECE TO THE END 7910 05:06:04,741 --> 05:06:07,744 BECAUSE AT THIS TIME YOU DON'T 7911 05:06:07,744 --> 05:06:10,380 HAVE TO MAKE REFERRAL AND THINK 7912 05:06:10,380 --> 05:06:12,115 ABOUT SUBSTANCE USE TREATMENT 7913 05:06:12,115 --> 05:06:13,683 AND DISORDERS, YOU ALSO CAN 7914 05:06:13,683 --> 05:06:15,552 THINK ABOUT REFERRAL TO 7915 05:06:15,552 --> 05:06:17,054 PREVENTION. 7916 05:06:17,054 --> 05:06:21,124 WERE THAT IT'S ACTUALLY MUCH 7917 05:06:21,124 --> 05:06:22,859 BROADER OPPORTUNITIES AND 7918 05:06:22,859 --> 05:06:23,627 HOPEFULLY LESS STIGMATIZATION, 7919 05:06:23,627 --> 05:06:24,694 EXCITED TO SEE WHAT'S GOING TO 7920 05:06:24,694 --> 05:06:26,797 HAPPEN WITH THAT. 7921 05:06:26,797 --> 05:06:28,031 OPEN ANNOUNCEMENT, I JUST WANTED 7922 05:06:28,031 --> 05:06:29,566 TO BRING IT TO EVERYBODY. 7923 05:06:29,566 --> 05:06:33,737 YOU CAN LOOK UP ORE -- OR 7924 05:06:33,737 --> 05:06:35,505 E-MAIL US AND WE'LL BE HAPPY TO 7925 05:06:35,505 --> 05:06:38,141 SEND LINK TO ANNOUNCEMENT. 7926 05:06:38,141 --> 05:06:40,844 WE HAVE TWO HANDS. 7927 05:06:40,844 --> 05:06:42,712 WE HAVE GUESTS HERE FROM FASD 7928 05:06:42,712 --> 05:06:43,146 UNITED. 7929 05:06:43,146 --> 05:06:44,681 YOU CAN GO AHEAD. 7930 05:06:44,681 --> 05:06:45,082 >> HI. 7931 05:06:45,082 --> 05:06:47,617 THIS IS THE JUICY PART OF THE 7932 05:06:47,617 --> 05:06:48,852 CONVERSATION FOR ME. 7933 05:06:48,852 --> 05:06:50,687 I HAVE SO MANY THOUGHTS, I HOPE 7934 05:06:50,687 --> 05:06:53,657 THERE'S A POINT TO WHAT I'M 7935 05:06:53,657 --> 05:06:54,858 ABOUT TO SAY. 7936 05:06:54,858 --> 05:06:56,159 BUT I THINK THIS CONVERSATION 7937 05:06:56,159 --> 05:06:57,727 ABOUT HOW WE MAKE THIS SCREENING 7938 05:06:57,727 --> 05:07:00,330 UNIVERSAL AND HOW WE JUST ASK 7939 05:07:00,330 --> 05:07:02,532 EVERYONE AND HOW WE GET PAST 7940 05:07:02,532 --> 05:07:04,167 THIS STIGMA, THAT'S THE IDEAL 7941 05:07:04,167 --> 05:07:05,569 FOR THERE NOT BEING STIGMA 7942 05:07:05,569 --> 05:07:07,337 AROUND THIS TOPIC. 7943 05:07:07,337 --> 05:07:12,476 WE ASK EVERY SINGLE PERSON. 7944 05:07:12,476 --> 05:07:14,678 A COMMON CONVERSATION AROUND 7945 05:07:14,678 --> 05:07:16,113 FASD COMMUNITY RIGHT NOW, HASN'T 7946 05:07:16,113 --> 05:07:19,149 REALLY BEEN BROUGHT UP, THIS 7947 05:07:19,149 --> 05:07:20,684 IDEA OF 100% PREVENTIBLE, THE 7948 05:07:20,684 --> 05:07:23,753 MORE YOU TALK TO SELF-ADVOCATES 7949 05:07:23,753 --> 05:07:26,723 AND BIRTH PARENTS AND EVEN 7950 05:07:26,723 --> 05:07:28,125 PHYSICIANS, WHO SAY, YOU KNOW, 7951 05:07:28,125 --> 05:07:29,960 IN PRACTICE IT ISN'T 100% 7952 05:07:29,960 --> 05:07:31,828 PREVENTIBLE, THERE'S A TIME 7953 05:07:31,828 --> 05:07:34,030 BEFORE KNOWING YOUR PREGNANT, 7954 05:07:34,030 --> 05:07:37,567 YOU KNOW, THERE ARE GEOGRAPHIC 7955 05:07:37,567 --> 05:07:38,201 FACTORS, ACCESS FACTORS, SOCIAL 7956 05:07:38,201 --> 05:07:39,369 DETERMINANTS OF HEALTH, ALL OF 7957 05:07:39,369 --> 05:07:40,070 THESE THINGS. 7958 05:07:40,070 --> 05:07:43,673 WHEN YOU TAKE THAT PIECE OUT, 7959 05:07:43,673 --> 05:07:45,542 YOU KNOW, IT'S TECHNICALLY 100% 7960 05:07:45,542 --> 05:07:47,310 PREVENTIBLE BUT BECAUSE OF 7961 05:07:47,310 --> 05:07:48,612 THESE, BLAME IS COMPLICATED. 7962 05:07:48,612 --> 05:07:50,680 BLAME IS TOO GRAY OF AN AREA TO 7963 05:07:50,680 --> 05:07:52,415 TRY TO NAIL SOMETHING DOWN. 7964 05:07:52,415 --> 05:07:54,618 IT'S LIKE TRYING TO NAIL 7965 05:07:54,618 --> 05:07:55,852 SOMETHING INTO AN OCEAN WAVE, 7966 05:07:55,852 --> 05:08:00,223 THE WATER IS STILL GOING BACK. 7967 05:08:00,223 --> 05:08:01,625 IT'S TOO ABSTRACT. 7968 05:08:01,625 --> 05:08:04,561 BUT I THINK THAT NARRATIVE 7969 05:08:04,561 --> 05:08:06,429 STARTING TO GAIN TRACTION, FASD 7970 05:08:06,429 --> 05:08:08,732 COMMUNITY IS DOING WONDERS FOR 7971 05:08:08,732 --> 05:08:11,468 TAKING THAT STIGMA OUT OF THE 7972 05:08:11,468 --> 05:08:12,903 CONVERSATION, AT LEAST MAKING US 7973 05:08:12,903 --> 05:08:15,705 MORE COMFORTABLE LIVING IN THAT 7974 05:08:15,705 --> 05:08:16,173 GRAY AREA. 7975 05:08:16,173 --> 05:08:19,009 I THINK THAT'S A REALLY 7976 05:08:19,009 --> 05:08:19,776 IMPORTANT CONVERSATION AND THEN 7977 05:08:19,776 --> 05:08:24,614 ALSO I HAVE AN OLDER BROTHER 7978 05:08:24,614 --> 05:08:28,885 WITH AN FASD, MY REASON FOR MY 7979 05:08:28,885 --> 05:08:29,419 WORK. 7980 05:08:29,419 --> 05:08:32,055 BUT I ALSO HAVE AN AUTISM 7981 05:08:32,055 --> 05:08:34,024 DIAGNOSIS, AND WATCHING THE WAYS 7982 05:08:34,024 --> 05:08:35,659 WE'RE TREATED VERY DIFFERENTLY 7983 05:08:35,659 --> 05:08:39,362 AND HAVE RECEIVED SERVICES 7984 05:08:39,362 --> 05:08:41,131 DIFFERENTLY, IS ALSO A KIND OF 7985 05:08:41,131 --> 05:08:45,402 LENS OR MODEL THAT I LOOK AT 7986 05:08:45,402 --> 05:08:46,703 THESE ISSUES WITH. 7987 05:08:46,703 --> 05:08:48,004 AND SOMETHING I'D LIKE TO SEE 7988 05:08:48,004 --> 05:08:52,075 HAPPEN AND I'M DOING PERSONALLY 7989 05:08:52,075 --> 05:08:56,012 WITH A FRIENDA SUPPORT GROUP 7990 05:08:56,012 --> 05:08:57,447 THROUGH FASD COLLABORATIVE CALL 7991 05:08:57,447 --> 05:08:58,481 TO ACTION TO NEURODIVERSITY 7992 05:08:58,481 --> 05:09:00,584 COMMUNITY SAYING NOT JUST WE 7993 05:09:00,584 --> 05:09:02,786 NEED TO CREATE SPACE FOR FASD 7994 05:09:02,786 --> 05:09:06,056 AND TRACTION BUT JUST KEEPING 7995 05:09:06,056 --> 05:09:07,490 THE CONFERRATION AROUND ADHD, 7996 05:09:07,490 --> 05:09:10,327 AUTISM, CONVERSATION WITH PEOPLE 7997 05:09:10,327 --> 05:09:12,195 IN HIGHER CLASSES HAVE WEALTH, 7998 05:09:12,195 --> 05:09:14,297 MIDDLE CLASS AND UP, WHITE, 7999 05:09:14,297 --> 05:09:17,100 EDUCATED, PEOPLE WHO WE KNOW ARE 8000 05:09:17,100 --> 05:09:18,535 CONSUMING ALCOHOL DURING 8001 05:09:18,535 --> 05:09:22,472 PREGNANCY BASED OFF BEHAVIORAL 8002 05:09:22,472 --> 05:09:23,807 RISK FACTOR ASSESSMENT, THAT 8003 05:09:23,807 --> 05:09:26,109 THOSE PEOPLE ARE USUALLY 8004 05:09:26,109 --> 05:09:28,945 ATTEMPTING TO GET AN ADHD AUTISM 8005 05:09:28,945 --> 05:09:32,282 DIAGNOSIS OR NEUROPSYCH 8006 05:09:32,282 --> 05:09:35,719 EVALUATION THAT DOESN'T INCLUES 8007 05:09:35,719 --> 05:09:41,424 FASTED. -- DOESN'T INCLUDE FASD. 8008 05:09:41,424 --> 05:09:42,959 THE PSYCHOLOGICAL ASSESSMENTS 8009 05:09:42,959 --> 05:09:44,160 ARE ALREADY BEING DONE, BUT 8010 05:09:44,160 --> 05:09:46,896 BEING ABLE TO SAY, HEY, THINGS 8011 05:09:46,896 --> 05:09:49,499 ALREADY BEING DONE INCLUDE US. 8012 05:09:49,499 --> 05:09:51,701 YOU KNOW, THIS INFRASTRUCTURE IS 8013 05:09:51,701 --> 05:09:53,336 GREAT BUT UNLESS DONE IN 8014 05:09:53,336 --> 05:09:56,506 COLLABORATION WITH THESE OTHER 8015 05:09:56,506 --> 05:09:59,142 SPACES, IT JUST FURTHERS THAT 8016 05:09:59,142 --> 05:10:01,344 DIVIDE, AND LAST THING I'LL SAY 8017 05:10:01,344 --> 05:10:03,079 IS I'VE HAD CONVERSATIONS WITH 8018 05:10:03,079 --> 05:10:05,915 MY MOTHER WHO IS NOT MY 8019 05:10:05,915 --> 05:10:09,419 BROTHER'S BIRTH MOM, AND WE 8020 05:10:09,419 --> 05:10:12,055 SHARE THIS SENTIMENT OF ADOPTIVE 8021 05:10:12,055 --> 05:10:13,123 CAREGIVERS ARE SO ADAMANT TO SAY 8022 05:10:13,123 --> 05:10:14,357 I AM THE REAL MOM. 8023 05:10:14,357 --> 05:10:15,158 THE REAL PARENT. 8024 05:10:15,158 --> 05:10:17,961 THIS IS THE REAL FAMILY. 8025 05:10:17,961 --> 05:10:20,497 UNTIL FASD IS IN THE 8026 05:10:20,497 --> 05:10:22,232 CONVERSATION, WELL, I'M THE 8027 05:10:22,232 --> 05:10:23,233 ADOPTIVE PARENT. 8028 05:10:23,233 --> 05:10:25,235 AND THAT IS REALLY DIFFICULT TO 8029 05:10:25,235 --> 05:10:27,003 SEE ESPECIALLY FOR KIDS WITH 8030 05:10:27,003 --> 05:10:28,838 FASD WHO THEY ARE SEPARATED 8031 05:10:28,838 --> 05:10:30,707 FROM, YOU KNOW, BLOOD LINE DOES 8032 05:10:30,707 --> 05:10:33,643 MATTER NOW BECAUSE FASD IS PART 8033 05:10:33,643 --> 05:10:34,878 OF THE CONVERSATION. 8034 05:10:34,878 --> 05:10:36,713 AND THAT'S SOMETHING I WANT 8035 05:10:36,713 --> 05:10:40,350 PEOPLE TO SIT WITH AND WHAT THAT 8036 05:10:40,350 --> 05:10:42,519 MEANS TO THAT PERSON. 8037 05:10:42,519 --> 05:10:44,621 AND THEN ALSO IF ANYONE HERE IS 8038 05:10:44,621 --> 05:10:47,791 IN THAT FURTHER BROADER 8039 05:10:47,791 --> 05:10:48,425 NEURODIVERSE COMMUNITY, TALKING 8040 05:10:48,425 --> 05:10:51,061 ABOUT WHAT IT LOOKS LIKE FOR 8041 05:10:51,061 --> 05:10:52,462 SOMEBODY WITH AUTISM OR ADHD TO 8042 05:10:52,462 --> 05:10:59,269 SAY TO A PARENT DID YOU DRINK 8043 05:10:59,269 --> 05:11:01,137 ALCOHOL DURING PREGNANCY? 8044 05:11:01,137 --> 05:11:01,905 I'VE BEEN DIAGNOSED, HOW DO YOU 8045 05:11:01,905 --> 05:11:03,740 ASK THE BIRTH PARENTS TO TAKE IT 8046 05:11:03,740 --> 05:11:05,375 A STEP FURTHER AND PUT THAT 8047 05:11:05,375 --> 05:11:06,576 QUESTION IN THE NEUROPSYCH 8048 05:11:06,576 --> 05:11:06,876 EVALUATION. 8049 05:11:06,876 --> 05:11:08,611 THAT'S A LOT OF THINGS I WAS 8050 05:11:08,611 --> 05:11:10,347 THINKING ABOUT, LAID OUT AT ONCE 8051 05:11:10,347 --> 05:11:11,981 BUT THEY WERE THINGS THAT I 8052 05:11:11,981 --> 05:11:15,051 WANTED TO GET AS PART OF THE 8053 05:11:15,051 --> 05:11:17,587 CONVERSATION AND WHEN I SEE CJ 8054 05:11:17,587 --> 05:11:22,692 NODDING I'M HAPPY I SAID IT. 8055 05:11:22,692 --> 05:11:23,159 >> THANK YOU. 8056 05:11:23,159 --> 05:11:25,662 THANK YOU SO MUCH. 8057 05:11:25,662 --> 05:11:27,731 WE HAVE TWO MINUTES UNTIL END OF 8058 05:11:27,731 --> 05:11:28,264 MEETING. 8059 05:11:28,264 --> 05:11:32,535 SO WE HAVE TWO HANDS NOW, EACH 8060 05:11:32,535 --> 05:11:34,204 HAS ONE MINUTE. 8061 05:11:34,204 --> 05:11:36,740 JANANI, YOU WERE FIRST. 8062 05:11:36,740 --> 05:11:37,674 GO AHEAD. 8063 05:11:37,674 --> 05:11:40,110 >> I HAD A COUPLE POINTS, I'LL 8064 05:11:40,110 --> 05:11:41,845 KEEP IT BRIEF. 8065 05:11:41,845 --> 05:11:45,148 I WANTED TO GO BACK TO A COUPLE 8066 05:11:45,148 --> 05:11:48,084 COMMENTS, JUST A COUPLE COMMENTS 8067 05:11:48,084 --> 05:11:48,852 MADE. 8068 05:11:48,852 --> 05:11:51,154 FIRST, CJ MENTIONED WANTING TO 8069 05:11:51,154 --> 05:11:53,323 REALLY THINK ABOUT DEVELOPMENTAL 8070 05:11:53,323 --> 05:11:55,859 TRAJECTORIES FROM POSITIVE AND 8071 05:11:55,859 --> 05:11:58,027 SUPPORTIVE CONTEXT, I WANTED TO 8072 05:11:58,027 --> 05:12:00,663 BRING UP ASPECTS OF HBCD THAT 8073 05:12:00,663 --> 05:12:02,198 DIDN'T GET INTO, DIDN'T HAVE 8074 05:12:02,198 --> 05:12:04,501 TIME IN MY PRESENTATION. 8075 05:12:04,501 --> 05:12:06,236 SPECIFICALLY LIKE SO MUCH OF 8076 05:12:06,236 --> 05:12:08,638 WHAT WE'VE TALKED ABOUT POINT TO 8077 05:12:08,638 --> 05:12:12,909 HOW MULTI-FACETED THIS IS AND 8078 05:12:12,909 --> 05:12:14,110 HOW REALLY UNDERSTANDING WHO IS 8079 05:12:14,110 --> 05:12:16,112 AT OUR TABLE, WHO IS AT OUR 8080 05:12:16,112 --> 05:12:17,614 OFFICE, WHO COMES TO THE LAB IS 8081 05:12:17,614 --> 05:12:18,648 IMPORTANT. 8082 05:12:18,648 --> 05:12:22,786 ONE OF THE THINGS HBCD BECAUSE 8083 05:12:22,786 --> 05:12:25,522 WE HAVE -- ONE OF THE THINGS 8084 05:12:25,522 --> 05:12:26,723 WE'RE CONSCIOUS ABOUT THINKING 8085 05:12:26,723 --> 05:12:28,024 THROUGH CHARACTERISTICS AND 8086 05:12:28,024 --> 05:12:30,326 BEING ABLE TO BALANCE BETWEEN 8087 05:12:30,326 --> 05:12:32,629 RURAL, URBAN, WHERE INCIDENCE OF 8088 05:12:32,629 --> 05:12:34,397 HIGH DISEASE BURDEN REALLY 8089 05:12:34,397 --> 05:12:37,567 EXIST, SO WE CAN SAMPLE 8090 05:12:37,567 --> 05:12:39,769 POPULATIONS APPROPRIATELY HAS 8091 05:12:39,769 --> 05:12:43,039 BEEN A HUGE FOCUS, ALLOWING US 8092 05:12:43,039 --> 05:12:45,575 TO CHARACTERIZE THE ENVIRONMENT 8093 05:12:45,575 --> 05:12:47,076 FROM A MULTI-FACETED 8094 05:12:47,076 --> 05:12:47,377 PERSPECTIVE. 8095 05:12:47,377 --> 05:12:49,078 WE TALK ABOUT RISK TRAJECTORIES, 8096 05:12:49,078 --> 05:12:51,581 I SAID THAT IN MY TALK BUT IT'S 8097 05:12:51,581 --> 05:12:53,550 ALSO IMPORTANT TO ACKNOWLEDGE 8098 05:12:53,550 --> 05:12:56,886 THAT GETTING THIS DATA ABOUT THE 8099 05:12:56,886 --> 05:12:57,353 ENVIRONMENT, FAMILIES, 8100 05:12:57,353 --> 05:12:58,288 RESOURCES, AND MUCH MORE ALLOWS 8101 05:12:58,288 --> 05:13:00,490 US TO ALSO LOOK AT PROTECTIVE 8102 05:13:00,490 --> 05:13:01,691 AND RESILIENT FACTORS AS WELL 8103 05:13:01,691 --> 05:13:05,395 AND LOOK THROUGH THAT FROM A 8104 05:13:05,395 --> 05:13:07,163 LONGITUDINAL PERSPECTIVE. 8105 05:13:07,163 --> 05:13:10,567 I WANTED TO MENTION THAT AS A 8106 05:13:10,567 --> 05:13:13,570 POTENTIAL VALUE COMING OUT OF 8107 05:13:13,570 --> 05:13:15,472 HBCD SINCE WE'LL BE ABLE TO LOOK 8108 05:13:15,472 --> 05:13:18,508 AT LONGITUDINAL TRAJECTORIES IN 8109 05:13:18,508 --> 05:13:18,808 THAT STUDY. 8110 05:13:18,808 --> 05:13:21,044 I'LL LEAVE MY OTHER COMMENTS FOR 8111 05:13:21,044 --> 05:13:21,311 LATER. 8112 05:13:21,311 --> 05:13:24,981 I DON'T WANT TO TAKE UP TOO 8113 05:13:24,981 --> 05:13:25,215 TIME. 8114 05:13:25,215 --> 05:13:27,851 I ALREADY SPOKE MORE THAN ONE 8115 05:13:27,851 --> 05:13:28,084 MINUTE. 8116 05:13:28,084 --> 05:13:30,353 >> CJ, YOUR HAND WAS UP. 8117 05:13:30,353 --> 05:13:37,827 >> YEAH, I WANT TO MIRROR THE 8118 05:13:37,827 --> 05:13:38,361 STIGMA PIECE. 8119 05:13:38,361 --> 05:13:40,029 EARLIER WHEN I WAS TELLING YOU 8120 05:13:40,029 --> 05:13:42,632 HAVE ADOPTED BOTH MY BOYS IT 8121 05:13:42,632 --> 05:13:44,300 WASN'T TRYING TO DISTANCE MYSELF 8122 05:13:44,300 --> 05:13:45,702 FROM THEIR FASD DIAGNOSIS. 8123 05:13:45,702 --> 05:13:49,138 I WAS JUST REALLY PROUD THAT I 8124 05:13:49,138 --> 05:13:53,176 AS AN INDIVIDUAL WITH FASD HAD 8125 05:13:53,176 --> 05:13:53,943 THE ABILITY TO ADOPT BECAUSE 8126 05:13:53,943 --> 05:13:56,546 STIGMA IS THERE AS WELL. 8127 05:13:56,546 --> 05:13:58,081 THE OTHER THING IS, YOU KNOW, I 8128 05:13:58,081 --> 05:14:00,917 WENT OUT TO LUNCH WITH MY 8129 05:14:00,917 --> 05:14:02,252 BOYFRIEND AND HIS EX-BOSS, AND 8130 05:14:02,252 --> 05:14:04,087 HE FOUND OUT I HAVE CHILDREN, I 8131 05:14:04,087 --> 05:14:05,955 WAS TALKING ABOUT FASD WORK. 8132 05:14:05,955 --> 05:14:09,259 AND LATER IN THE CONVERSATION HE 8133 05:14:09,259 --> 05:14:13,429 SAID SOMETHING ABOUT HOW I HAVE 8134 05:14:13,429 --> 05:14:14,397 AN 18-YEAR-OLD, TECHICALLY 8135 05:14:14,397 --> 05:14:14,864 ADOPTED. 8136 05:14:14,864 --> 05:14:17,567 GOOD, I WASN'T JUDGING BUT WAS 8137 05:14:17,567 --> 05:14:19,335 TOTALLY JUDGING. 8138 05:14:19,335 --> 05:14:22,872 I SAID, WELL, THAT'S THE INITIAL 8139 05:14:22,872 --> 05:14:24,941 REACTION, BUT EVEN IF I DID 8140 05:14:24,941 --> 05:14:26,476 DRINK, I WOULD BE HONEST WITH 8141 05:14:26,476 --> 05:14:27,010 YOU. 8142 05:14:27,010 --> 05:14:30,513 AND THIS IS THE CONVERSATION WE 8143 05:14:30,513 --> 05:14:33,583 NEED TO HAVE. 8144 05:14:33,583 --> 05:14:36,886 I HAVE BEEN, YOU KNOW, TOLD 8145 05:14:36,886 --> 05:14:38,187 PEOPLE THOUGHT -- I'M A BIRTH 8146 05:14:38,187 --> 05:14:40,256 MOM, THAT I WAS A BIRTH MOM, AND 8147 05:14:40,256 --> 05:14:41,824 YOU KNOW WHAT? 8148 05:14:41,824 --> 05:14:43,026 I HAVEN'T CORRECTED THEM BECAUSE 8149 05:14:43,026 --> 05:14:44,561 THEY DON'T NEED THAT 8150 05:14:44,561 --> 05:14:44,861 INFORMATION. 8151 05:14:44,861 --> 05:14:46,963 AND THE MORE I LOOK THEM IN THE 8152 05:14:46,963 --> 05:14:51,100 EYE, I'M LIKE, WELL, YEAH, I AM, 8153 05:14:51,100 --> 05:14:52,869 SO PEOPLE ARE GRAPES OR RAISIN. 8154 05:14:52,869 --> 05:14:54,571 IF YOU SHRIVEL UP UNDER THE 8155 05:14:54,571 --> 05:14:58,107 PRESSURE YOU'RE A RAISIN. 8156 05:14:58,107 --> 05:15:00,076 YOU DON'T DESERVE TO BE A GRAPE. 8157 05:15:00,076 --> 05:15:02,912 I'VE SEEN MY SHARE OF RAISINS. 8158 05:15:02,912 --> 05:15:04,948 AND THE MORE RAISINS I COLLECT, 8159 05:15:04,948 --> 05:15:06,115 THE MORE TIMES I HAVE SOMEONE 8160 05:15:06,115 --> 05:15:08,985 GOING OFF AND THINKING ABOUT 8161 05:15:08,985 --> 05:15:13,856 WHAT IT MEANS TO BE A BIRTH MOM. 8162 05:15:13,856 --> 05:15:16,159 AND I DON'T SEPARATE MYSELF FROM 8163 05:15:16,159 --> 05:15:18,227 MY CHILDREN'S BIRTH PARENTS. 8164 05:15:18,227 --> 05:15:21,297 I'M JUST LUCKY I DON'T HAVE AN 8165 05:15:21,297 --> 05:15:23,166 ALCOHOL USE DISORDER, I HAVE 8166 05:15:23,166 --> 05:15:27,870 INFORMATION AND RESOURCES TO NOT 8167 05:15:27,870 --> 05:15:28,171 DRINK. 8168 05:15:28,171 --> 05:15:31,674 AND IT LEADS PEOPLE GOING, OH, 8169 05:15:31,674 --> 05:15:32,675 SO THOSE CONVERSATIONS DO HAPPEN 8170 05:15:32,675 --> 05:15:33,343 AS WELL. 8171 05:15:33,343 --> 05:15:35,645 I DON'T LIKE TO SEPARATE MYSELF 8172 05:15:35,645 --> 05:15:43,519 FROM MOMS WHO HAVE GIVEN BIRTH 8173 05:15:43,519 --> 05:15:45,722 VERSUS ADOPTIVE MOMS, IT DOESN'T 8174 05:15:45,722 --> 05:15:46,789 DO ANY GOOD, DISHONEST AND 8175 05:15:46,789 --> 05:15:49,225 TERRIBLE, I DON'T KNOW THE WORD. 8176 05:15:49,225 --> 05:15:55,231 I WOULD FEEL LIKE A TRAITOR TO 8177 05:15:55,231 --> 05:15:56,633 WOMEN WHO DRANK AND GAVE BIRTH. 8178 05:15:56,633 --> 05:15:59,168 I'M A MOM JUST LIKE THEM. 8179 05:15:59,168 --> 05:16:02,338 >> THANK YOU FOR SHARING. 8180 05:16:02,338 --> 05:16:03,406 8181 05:16:03,406 --> 05:16:05,508 ALL RIGHT. 8182 05:16:05,508 --> 05:16:08,311 LAST BUT NOT LEAST, THIS WOULD 8183 05:16:08,311 --> 05:16:10,847 BE LAST COMMENT BECAUSE WE'RE 8184 05:16:10,847 --> 05:16:13,950 OUT OF TIME AND I WILL LET OUR 8185 05:16:13,950 --> 05:16:15,551 CHAIRS CONCLUDE. 8186 05:16:15,551 --> 05:16:17,887 >> I WILL BE VERY BRIEF. 8187 05:16:17,887 --> 05:16:20,623 THIS COMMITTEE HAS BEEN VITAL TO 8188 05:16:20,623 --> 05:16:22,859 THE FEDERAL RESPONSE TO FASD AND 8189 05:16:22,859 --> 05:16:25,128 TO FASTED COMMUNITY MORE THAN 25 8190 05:16:25,128 --> 05:16:27,630 YEARS, I THINK IT'S REMARKABLE 8191 05:16:27,630 --> 05:16:30,566 WHAT THE AGENCIES HAVE DONE AND 8192 05:16:30,566 --> 05:16:32,101 ARE DOING. 8193 05:16:32,101 --> 05:16:34,203 THAT'S WERE SOMETHING 8194 05:16:34,203 --> 05:16:36,506 SIGNIFICANT THAT'S MISSING. 8195 05:16:36,506 --> 05:16:39,776 THAT'S MONEY AND RESOURCES. 8196 05:16:39,776 --> 05:16:42,612 FOR 18 YEARS HRSA HAD ONE GRANT, 8197 05:16:42,612 --> 05:16:44,814 ONE PROJECT HERE. 8198 05:16:44,814 --> 05:16:48,184 AS WE HEARD TODAY, INCREDIBLY 8199 05:16:48,184 --> 05:16:48,518 SUCCESSFUL. 8200 05:16:48,518 --> 05:16:51,054 NO FUNDING, NO FUNDING AT THIS 8201 05:16:51,054 --> 05:16:51,788 POINT. 8202 05:16:51,788 --> 05:16:55,525 YET STILL AT THE TABLE. 8203 05:16:55,525 --> 05:16:57,527 SO IT'S CRITICAL THAT WE PASS 8204 05:16:57,527 --> 05:16:58,628 THE RESPECT ACT, I WANT TO 8205 05:16:58,628 --> 05:16:59,228 MENTION THAT. 8206 05:16:59,228 --> 05:17:02,098 WE ALL HAVE A ROLE WITH THAT. 8207 05:17:02,098 --> 05:17:03,633 IT'S CRITICAL THAT THERE ARE 8208 05:17:03,633 --> 05:17:07,036 AUTHORIZATIONS AND 8209 05:17:07,036 --> 05:17:08,037 APPROPRIATIONS TO DO THINGS 8210 05:17:08,037 --> 05:17:10,606 WE'VE LEARNED ARE SUCCESSFUL. 8211 05:17:10,606 --> 05:17:15,812 AND WE KNOW ARE BADLY NEEDED. 8212 05:17:15,812 --> 05:17:17,213 SO, WE'RE OPTIMISTIC THAT WE CAN 8213 05:17:17,213 --> 05:17:19,615 MAKE PROGRESS AND WE CAN GET 8214 05:17:19,615 --> 05:17:21,918 LEGISLATION PASSED, AND WE CAN 8215 05:17:21,918 --> 05:17:22,919 GET GREATER ATTENTION AND 8216 05:17:22,919 --> 05:17:25,555 INVESTMENT FOR THIS ISSUE. 8217 05:17:25,555 --> 05:17:27,857 BECAUSE IT'S -- IT'S AN SHAME 8218 05:17:27,857 --> 05:17:30,893 NOT JUST NOVEL APPROACHES BUT 8219 05:17:30,893 --> 05:17:32,428 FUNDAMENTAL APPROACHES TO 8220 05:17:32,428 --> 05:17:33,496 ADDRESSING DISABILITIES, WE'RE 8221 05:17:33,496 --> 05:17:33,830 UNABLE TO DO. 8222 05:17:33,830 --> 05:17:35,264 LISTENING TO ALL OF THE IDEAS 8223 05:17:35,264 --> 05:17:38,034 AND ALL OF THE THINGS, IT COMES 8224 05:17:38,034 --> 05:17:40,536 DOWN TO SO OFTEN NOT HAVING 8225 05:17:40,536 --> 05:17:42,371 RESOURCES TO DO THE INTERVENTION 8226 05:17:42,371 --> 05:17:45,441 STUDIES OR TO HAVE AN ECONOMIC 8227 05:17:45,441 --> 05:17:46,642 STUDY, HAVE THINGS THAT WILL 8228 05:17:46,642 --> 05:17:48,511 ADVANCE THE FIELD AND MAKE SURE 8229 05:17:48,511 --> 05:17:50,346 PEOPLE HAVE SERVICES THEY NEED. 8230 05:17:50,346 --> 05:17:52,882 SO, WE'RE GOING TO KEEP AT IT. 8231 05:17:52,882 --> 05:17:54,951 AGAIN, EVERYONE HAS A ROLE, EVEN 8232 05:17:54,951 --> 05:17:57,920 THOSE OF YOU IN AGENCIES STILL 8233 05:17:57,920 --> 05:18:02,058 AS INDIVIDUALS, YOU CAN SPEAK 8234 05:18:02,058 --> 05:18:04,160 OUT, CONTINUE YOUR VITAL WORK TO 8235 05:18:04,160 --> 05:18:05,461 ALLOWS EMMA, KATHY, MYSELF AND 8236 05:18:05,461 --> 05:18:07,897 OTHERS TO GO TO LAWMAKERS AND 8237 05:18:07,897 --> 05:18:08,865 INSIST THAT WE GET MORE 8238 05:18:08,865 --> 05:18:10,833 ATTENTION TO THE ISSUE. 8239 05:18:10,833 --> 05:18:12,902 THANK YOU FOR A GREAT MEETING 8240 05:18:12,902 --> 05:18:13,569 AND ALL THAT YOU'RE DOING. 8241 05:18:13,569 --> 05:18:14,670 >> THANK YOU. 8242 05:18:14,670 --> 05:18:16,639 THANK YOU, TOM, FOR COMING. 8243 05:18:16,639 --> 05:18:18,141 WE ALWAYS APPRECIATE WHEN YOU 8244 05:18:18,141 --> 05:18:18,741 COME. 8245 05:18:18,741 --> 05:18:23,112 I ALSO SPEAK TO VIDEOCAST, WE 8246 05:18:23,112 --> 05:18:25,114 INVITE FOR PUBLIC MEETINGS 8247 05:18:25,114 --> 05:18:27,917 EVERYBODY, WE'RE OPEN, WE 8248 05:18:27,917 --> 05:18:28,785 WELCOME YOU. 8249 05:18:28,785 --> 05:18:30,219 COME NEXT TIME WHEN WE HAVE 8250 05:18:30,219 --> 05:18:30,653 PUBLIC MEETING. 8251 05:18:30,653 --> 05:18:31,954 THANK YOU SO MUCH. 8252 05:18:31,954 --> 05:18:34,123 ALSO BEFORE WE CONCLUDE JUST 8253 05:18:34,123 --> 05:18:36,325 WANTED TO TELL ONE OF OUR GOALS 8254 05:18:36,325 --> 05:18:39,395 WE'RE THINKING ABOUT ACTIONS, 8255 05:18:39,395 --> 05:18:41,264 RIGHT? 8256 05:18:41,264 --> 05:18:42,398 AFTER THE MEETING MEMBERS 8257 05:18:42,398 --> 05:18:43,332 THINKING ABOUT ACTIONS WHAT YOU 8258 05:18:43,332 --> 05:18:45,768 WANT TO DO WITHIN YOUR 8259 05:18:45,768 --> 05:18:48,271 INSTITUTE, WITHIN YOUR AGENCY. 8260 05:18:48,271 --> 05:18:56,045 AND ANYTHING YOU FEEL WE CAN 8261 05:18:56,045 --> 05:18:58,347 HELP AS ICCFASD, WORKING GROUP 8262 05:18:58,347 --> 05:18:59,382 OR HELP WITH ADVICE, JUST GET 8263 05:18:59,382 --> 05:19:00,883 BACK TO UNDER THE CIRCUMSTANCES. 8264 05:19:00,883 --> 05:19:02,819 THIS IS OUR WORKING MEETING FOR 8265 05:19:02,819 --> 05:19:04,353 PUBLIC BUT WE'RE WORKING 8266 05:19:04,353 --> 05:19:04,921 TOGETHER. 8267 05:19:04,921 --> 05:19:07,323 SO THINK ABOUT ACTIONS. 8268 05:19:07,323 --> 05:19:09,492 WITH THAT, I WILL TURN TO TRISH 8269 05:19:09,492 --> 05:19:10,159 POWELL TO CONCLUDE. 8270 05:19:10,159 --> 05:19:12,028 >> I WANT TO ADD MY THANKS TO 8271 05:19:12,028 --> 05:19:12,829 EVERYONE FOR SPENDING THE WHOLE 8272 05:19:12,829 --> 05:19:13,663 DAY WITH US. 8273 05:19:13,663 --> 05:19:14,964 I SO APPRECIATE YOUR TIME AND 8274 05:19:14,964 --> 05:19:15,631 ATTENTION. 8275 05:19:15,631 --> 05:19:17,700 I KNOW THERE ARE A LOT OF THINGS 8276 05:19:17,700 --> 05:19:20,002 THAT PULL ON YOUR TIME BUT I 8277 05:19:20,002 --> 05:19:22,371 THINK THIS IS VITALLY IMPORTANT. 8278 05:19:22,371 --> 05:19:23,506 BEING AN INTERAGENCY COMMITTEE 8279 05:19:23,506 --> 05:19:26,576 WE CAN LEVERAGE EACH OTHER'S 8280 05:19:26,576 --> 05:19:27,410 ACTIONS, KNOWLEDGE, EXPERTISE, 8281 05:19:27,410 --> 05:19:29,612 BUT WE ALSO NEED TO HEAR FROM 8282 05:19:29,612 --> 05:19:31,681 ALL OF THE PEOPLE WHO 8283 05:19:31,681 --> 05:19:34,116 PARTICIPATED TODAY AND EVERYONE 8284 05:19:34,116 --> 05:19:37,153 OUT THERE FOR IDEAS FOR 8285 05:19:37,153 --> 05:19:38,788 RECOMMENDATIONS FOR WHAT 8286 05:19:38,788 --> 05:19:40,256 DIFFERENT PEOPLE NEED FROM US 8287 05:19:40,256 --> 05:19:41,858 BECAUSE WE SERVE THE PUBLIC. 8288 05:19:41,858 --> 05:19:43,192 THAT'S OUR JOB. 8289 05:19:43,192 --> 05:19:45,828 SO PLEASE LET US KNOW WHAT'S 8290 05:19:45,828 --> 05:19:47,129 MOST IMPORTANT TO YOU. 8291 05:19:47,129 --> 05:19:52,935 PLEASE CONTINUE TO STAY IN 8292 05:19:52,935 --> 05:19:54,270 TOUCH. 8293 05:19:54,270 --> 05:19:55,872 MEMBER AGENCIES, IT'S OUR JOB TO 8294 05:19:55,872 --> 05:19:57,106 WORK TOGETHER, SO THANK YOU VERY 8295 05:19:57,106 --> 05:19:59,942 MUCH. 8296 05:19:59,942 --> 05:20:05,982 8297 05:20:05,982 --> 05:20:07,950 >> THANK YOU, EVERYONE. 8298 05:20:07,950 --> 05:20:09,585 THANK YOU, ALL PARTICIPANTS. 8299 05:20:09,585 --> 05:20:11,454 THANK YOU, WE CONCLUDE NOW. 8300 05:20:11,454 --> 05:20:14,257 [END OF PROGRAM] 8301 05:20:14,257 --> 05:20:20,296 8302 05:20:20,296 --> 05:20:30,339