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WELCOME TO MEMBERS OF OUR

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VIEWING AUDIENCE AND MEMBERS OF

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THE IACC AND ALTERNATES. TO THIS

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MEETING OF THE INTERAGENCY

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AUTISM COORDINATING COMMITTEE

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STRATEGIC PLAN WORKING GROUP.

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I'M GOING TO GIVE YOU SOME

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BACKGROUND ON WHAT WE ARE GOING

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TO BE DOING TODAY. I WILL START

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WITH MEETING LOGISTICS AND

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HOUSEKEEPING ITEMS TO REMIND

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PEOPLE WHO ARE IN ZOOM TO PLEASE

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KEEP YOUR MICROPHONES OFF UNLESS

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SPEAKING AND YOU ARE WELCOME TO

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TURN CAMERAS ON WHEN SPEAKING

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BUT YOU CAN LEAVE OFF IF YOU

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PREFER THAT. DURING THE

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DISCUSSION PLEASE GIVE YOUR

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COMMENTS BRIEFLY APPROXIMATELY

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ONE TO TWO MINUTES TO ENABLE

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OTHER MEMBERS TO HAVE A TURN

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SPEAKING. WE SHOULD HAVE PLENTY

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OF TIME OVER THE NEXT TWO

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AFTERNOONS FOR EVERYONE THAT IS

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IN THESE GROUPS TO BE ABLE TO

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MAKE A FEW COMMENTS.  IF WE KEEP

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THEM BRIEF. FORGIVE ME IN

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ADVANCE IF I END UP INTERRUPTING

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IF ANY COMMENTS GO ON TOO LONG I

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MIGHT CUT IN TO TRY TO GET US

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BACK ON TRACK AND SO NOT TO BE

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RUDE BUT I WANTED TO MAKE SURE

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THAT EVERYONE HAS A CHANCE TO

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TALK SO PLEASE KEEP THAT IN MIND

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WE WANT TO GIVE EVERYONE A TURN 

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FOR COMMITTEE MEMBERS THAT WOULD

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LIKE A COMMENT READ ALLOWED, WE

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ARE GOING TO HAVE SOMEONE FROM

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THE OR STAFF USING THE SCREEN

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NAME SEND COMMENTS HERE AND IF

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YOU WANT TO SEND THEM YOUR

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COMMENTS, THAT PERSON WHO IS

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MR. STEVEN ISAACSON FROM OUR

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TEAM, STEVEN WOULD YOU LIKE TO

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SAY HELLO?

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>> GOOD AFTERNOON,
EVERYBODY.

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PLEASED TO BE HERE.

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>> STEVEN WILL BE HAPPY TO
READ

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YOUR COMMENTS ALLOWED AND IF YOU

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HAVE A REALLY LONG COMMENT YOU

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MAY HAVE TO BREAK IT UP INTO TWO

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OR THREE PIECES. SO HE CAN

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RECEIVE THEM AND THEN HE WILL

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READ FOR YOU IF YOU WANT THAT.

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AND AS REMINDER BOTH TO AUDIENCE

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THAT IS LISTENING ON NIH

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VIDEOCAST AND TO MEMBERS OF THE

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COMMITTEE WE DO HAVE CLOSE

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CAPTIONING IN VIDEOCAST YOU CAN

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PRESS A BUTTON FOR CLOSE

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CAPTIONING AND IN ZOOM GO TO

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BOTTOM OF YOUR SCREEN AND CLICK

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CC LIVE TRANSCRIPT TO BE ABLE TO

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GET CLOSED CAPTIONING. NEXT, I

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WOULD LIKE TO SHARE A LITTLE BIT

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ABOUT PURPOSE OF THIS WORKING

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GROUP MEETING TODAY. SO AS YOU

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KNOW WE ARE WORKING HARD ON THE

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IACC STRATEGIC PLAN WHICH IS THE

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NUMBER ONE TASK OF THIS

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COMMITTEE. AS WE CONVENED LAST

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YEAR AND WE ARE STARTING TO WORK

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ON THE STRATEGIC PLAN. SO WE ARE

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GOING TO BE FOCUSING EXCLUSIVELY

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ON THE STRATEGIC PLAN AT THIS

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MEETING, OTHER REGULAR COMMITTEE

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BUSINESS WILL NOT BE DISCUSSED

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AT THIS MEETING SO WE WON'T HAVE

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SESSIONS LIKE PUBLIC COMMENT AND

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SOME OF THE OTHER SECTIONS THAT

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WE NORMALLY HAVE IN OUR REGULAR

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MEETINGS. ATTENDANCE AT THIS

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MEETING IS VOLUNTARY SO IT IS AN

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OPTIONAL MEETING AND NOT

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EVERYONE OF THE MEMBERS IS GOING

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TO BE HERE THOUGH WE HAD A LOT

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OF PEOPLE THAT DECIDED THEY WERE

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GOING TO BE HERE AND PERHAPS

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DIDN'T INTERFERE WITH SUMMER

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VACATION PLANS AND ARE GOING TO

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BE HERE. INSTEAD OF GOING AROUND

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HAVING EVERYONE INTRODUCE

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THEMSELVES I'M -- WE PREPARED A

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SLIDE WITH THE NAMES OF EVERYONE

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BECAUSE IT IS A REALLY BIG GROUP

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BUT WE HAVE REPRESENTATION FROM

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SEVERAL FEDERAL AGENCIES

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INCLUDING SAMHSA EPA NIDCD, NIH

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OFFICE OF DIRECTOR,

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ADMINISTRATION FOR CHILDREN AND

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FAMILIES, ADMINISTRATION FOR

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COMMUNITY LIVING NICHD, NINDS,

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AHRQ, HRSA, CDC, FDA, HUD CMS,

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NIDCD AND DEPARTMENT OF DEFENSE.

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THEN WE HAVE LARGE NUMBER OF

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PUBLIC MEMBERS ALSO WHO ARE

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SCHEDULED TO BE ON TODAY. THERE

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MAYBE A FEW PEOPLE JOINING LATE

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OR TUNING IN FOR PART OF THE

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MEETING WHICH IS FINE BUT WANT

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TO GIVE EVERYBODY A CHANCE WHO

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HAD TIME TO BE INVOLVED IN THIS

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MEETING.  WE WILL COME BACK TO

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DISCUSS THE STRATEGIC PLAN MORE

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AT THE OCTOBER MEETING SO AT

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THAT POINT ALL MEMBERS WILL HAVE

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ANOTHER OPPORTUNITY. FOR OUR

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AGENDA TODAY WE HAVE TIME -- I

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WILL GIVE BACKGROUND ON

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STRATEGIC PLAN TO GET EVERYONE

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OBJECT SAME PAGE WHAT OUR GOAL

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IS THEN WE WILL HAVE TIME TO

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DISCUSS QUESTIONS ONE THROUGH

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FOUR OF THE STRATEGIC PLAN AND I

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HAVE A FEW DISCUSSION QUESTIONS

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PREPARED AND YOU CAN FEEL FREE

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TO RAISE YOUR HAND AND SHARE IF

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YOU WOULD LIKE TO SHARE SOME

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COMMENTS BASED ON THOSE

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DISCUSSION QUESTIONS. WE BUILT

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QUITE A BIT OF TIME INTO THE

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MEETING, SO THERE MAYBE A LITTLE

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BIT OF EXTRA TIME IF SO THEN I

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WILL ALLOW EXTRA TIME WITH

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ANYTHING THAT WE HAVE TIME FOR.

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SO I WANTED TO AGAIN REMIND US

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ALL GET US ALL ON THE SAME PAGE

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WHAT THE PURPOSE OF THE IACC

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STRATEGIC PLAN IS. THIS PLAN IS

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REQUIRED BY CONGRESS IN THE

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AUTISM CARES ACT OF 2019. IT

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SERVES AS A GUIDE THAT OUTLINES

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PRY YOUR THE IS AND DIRECTIONS

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FOR AUTISM RELATED EFFORTS

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ACROSS FEDERAL AGENCIES AND ALSO

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USED BY PRIVATE PARTNER

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ORGANIZATIONS. ONE OF THE MAIN

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WAYS THAT THE IACC PROVIDES

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ADVICE TO THE SECRETARY OF

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HEALTH AND HUMAN SERVICES WHICH

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IS PART OF THE MANDATE OF THE

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IACC IS THROUGH THE STRATEGIC

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PLAN AND THE RECOMMENDATIONS

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CONTAINED WITHIN THE PLAN. IT

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INCLUDES NUMBER OF WHAT HAVE

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BEEN CALLED OBJECTIVES IN THE

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PAST, I WILL BE SHARING WITH THE

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IACC IN OCTOBER, GOING TO BE

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SUGGESTING WE RENAME THEM

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RECOMMENDATIONS BECAUSE UNDER

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THE FEDERAL ADVISORY COMMITTEE

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ACT EACH OBJECTIVE IS A

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RECOMMENDATION TO THE SECRETARY

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AND IT MIGHT MAKE IT A LITTLE

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CLEARER FOR PEOPLE TO UNDERSTAND

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THAT. THESE OBJECTIVES ARE

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RECOMMENDATIONS ADDRESS RESEARCH

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SERVICES AND POLICY ACTIVITIES

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AND WE ALSO ARE REQUIRED TO

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PROVIDE A BUDGET RECOMMENDATION,

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THAT'S ALSO PART OF THE CARES

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ACT. SO THE PROCESS WE ARE USING

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TO CREATE THE STRATEGIC PLAN IS

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FIRST WE HAVE DONE A FEW THINGS

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TO SOLICIT PUBLIC INPUT. SO WE

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HAVE BEEN RECEIVING PUBLIC

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COMMENTS ON A REGULAR BASIS AT

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OUR MEETINGS AND I KNOW EVERYONE

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HEARD PUBLIC COMMENTS OR READ

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THEM. IF THEY WERE SUBMITTED AS

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WRITTEN COMMENTS. AND WE ALSO

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PUT OUT A SPECIAL REQUEST FOR

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INFORMATION OR INPUT FROM PUBLIC

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ON OUR STRATEGIC PLAN.  ON WHAT

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THEY WOULD LIKE TO SEE IN THE

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STREAM PLAN. WE ALSO HAVE BEEN

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GATHERING INPUT FROM MEMBERS OF

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THE COMMITTEE AND WE SENT OUT A

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SURVEY THAT WAS USED TO PROVIDE

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SOME OF THE INPUT AND ALSO

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LISTENING TO Y'ALL DURING

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COMMITTEE MEETINGS. THE PROCESS

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WILL INVOLVE CONSENSUS, WE ARE

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ALL GOING TO BE COMING TOGETHER

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PUTTING IDEAS TOGETHER AND

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COMING INTO CONSENSUS ABOUT WHAT

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BELONGS IN THIS PLAN. WE WILL

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MAKE AN EFFORT TO RESOLVE ANY

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QUESTIONS CONCERNS AND CONFLICTS

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IN THIS PROCESS SO THAT BECOME

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UP WITH A PLAN THAT EVERYONE CAN

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AGREE ON. THEN THE FINAL DRAFT

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WILL BE REVIEWEDD BY THE FULL

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IACC, THIS IS JUST A WORKING

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GROUP MEETING WHERE WE CAN

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DISCUSS SOME IDEAS AND SHARE

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SOME INPUT THAT WOULD BE PUT

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INTO A DRAFT. THE FULL IACC WILL

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ACCEPT THE FINAL STRATEGIC PLAN

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BY MAJORITY VOTE.  THE STRATEGIC

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PLAN ONCE PUBLISHED CAN BE USED

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BY FEDERAL AGENCIES AND OTHER

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COMMUNITY MEMBERS.  IT IS MEANT

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TO BE A DOCUMENT THICKENS TRACK

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OF WHAT IS CHANGING -- KEEPS

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TRACK OF WHAT IS CHANGING IN THE

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FEEL AND HOW WE CONSTANTLY SHIFT

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DIRECTIONS BASED ON WHAT IS

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LEARNED, WHAT IS NEW, AND MAYBE

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NEW CHALLENGES AND EMERGING

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ISSUES THAT HAVE COME UP SO WE

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CAN KEEP IT RELEVANT.  SO THE

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TIME LINE I'M ALSO GOING TO

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REVIEW WITH YOU FOR THE

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STRATEGIC PLAN IS CONVENED AS A

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COMMITTEE LAST YEAR, IN JULY

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2021, WE STARTED TALKING ABOUT

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THE STRATEGIC PLAN SO WE

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INTRODUCED THIS PROCESS. AND IN

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OCTOBER WE DID REQUEST FOR --

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REQUEST FOR INFORMATION FROM THE

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PUBLIC. THAT CLOSED IN NOVEMBER

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AND WE SHARED THE RESULTS WITH

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YOU IN JANUARY. IN NOVEMBER WE

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ISSUED A SURVEY TO MEMBERS OF

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THE COMMITTEE THAT CLOSED ON --

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IN MARCH OF 2022 AND WE SHARED

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THE RESULTS OF THAT. IN OUR

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APRIL MEETING SO THOSE ARE DATA

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GATHERING ACTIVITIES WE HAVE

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DONE SO FAR. AS OF YESTERDAY WE

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HAVE PUBLISHED THE FIRST DRAFT

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OF STRATEGIC PLAN CHAPTERS ON

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THE IACC WEBSITE. AND THIS IS A

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FIRST DRAFT, THOSE WHO MAY HAVE

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HAD TIME TO BROWSE THROUGH

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CHAPTERS IF YOU SEE ANYTHING

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THAT YOU FEEL NEEDS TO CHANGE

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DON'T BE CONCERNED OVERLY MUCH,

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IT IS A FIRST DRAFT WE ARE GOING

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TO BE CONTINUING TO WORK ON THE

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DRAFTS AS WE HEAR MORE INPUT

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FROM Y'ALL. AT THIS JULY WORKING

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GROUP MEETING IACC MEMBERS ARE

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GOING TO HAVE A CHANCE TO

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PROVIDE THAT EPIPUT THEN WE WILL

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SEND YOU ANOTHER SURVEY YOU CAN

258
00:09:18,880 --> 00:09:21,440
COMPLETE BETWEEN JULY AND AUGUST

259
00:09:21,440 --> 00:09:23,880
THAT WILL GIVE A CHANCE TO LOOK

260
00:09:23,880 --> 00:09:25,120
CAREFULLY AT OTHER COMPONENTS WE

261
00:09:25,120 --> 00:09:26,480
HAVEN'T HIGHLIGHTED SO FAR

262
00:09:26,480 --> 00:09:28,720
INCLUDING THE MISSION AND VISION

263
00:09:28,720 --> 00:09:30,160
STATEMENT, THE CORE VALUES AND

264
00:09:30,160 --> 00:09:31,760
SOME OTHER PARTS OF THE

265
00:09:31,760 --> 00:09:32,760
STRATEGIC PLAN SO YOU WILL HAVE

266
00:09:32,760 --> 00:09:35,920
A CHANCE TO LOOK AT THOSE. OUR

267
00:09:35,920 --> 00:09:39,720
TEAM HAS TAKEN AN EFFORT TO

268
00:09:39,720 --> 00:09:40,600
REVISE BASED ON WHAT WE HAVE

269
00:09:40,600 --> 00:09:41,400
BEEN HEARING FROM YOU AS A

270
00:09:41,400 --> 00:09:47,920
COMMITTEE.  IN EARLY OCTOBER WE

271
00:09:47,920 --> 00:09:50,400
WILL PROVIDE NEW DRAFTS OF

272
00:09:50,400 --> 00:09:51,480
STRATEGIC PLAN CHAPTERS ONLINE

273
00:09:51,480 --> 00:09:55,400
TO REVIEW AND THAT WILL BE

274
00:09:55,400 --> 00:09:56,240
AVAILABLE BEFORE OCTOBER 26TH

275
00:09:56,240 --> 00:09:59,480
MEETING. AT THE OCTOBER 26

276
00:09:59,480 --> 00:10:01,320
MEETING WE WILL AGAIN DISCUSS

277
00:10:01,320 --> 00:10:04,880
THE STRATEGIC PLAN, IF IT IS IN

278
00:10:04,880 --> 00:10:06,760
A PLACE WHERE THE COMMITTEE

279
00:10:06,760 --> 00:10:08,920
FEELS THEY COULD APPROVE WITH

280
00:10:08,920 --> 00:10:10,080
SOME SMALL CHANGES WE WOULD LIKE

281
00:10:10,080 --> 00:10:13,080
TO APPROVE IT AND IF WE CANNOT

282
00:10:13,080 --> 00:10:16,840
WE WOULD SCHEDULE ANOTHER TIME

283
00:10:16,840 --> 00:10:18,840
TO MAKE LAST PASS OF THE PLAN

284
00:10:18,840 --> 00:10:20,880
BUT HOPE WE WILL FINISH IT

285
00:10:20,880 --> 00:10:22,480
WITHIN THIS CALENDAR YEAR

286
00:10:22,480 --> 00:10:24,920
HOPEFULLY OR AT THE LATEST BY

287
00:10:24,920 --> 00:10:33,720
JANUARY 2023. THE STRATEGIC PLAN

288
00:10:33,720 --> 00:10:35,080
IS USEFUL WHEN FINISH AND

289
00:10:35,080 --> 00:10:37,600
PUBLISHED AN CAN BE USED SO WE

290
00:10:37,600 --> 00:10:38,960
WANT TO GET IT OUT AS SOON AS WE

291
00:10:38,960 --> 00:10:42,360
CAN BUT TO MAKE SURE IT IS DONE

292
00:10:42,360 --> 00:10:47,520
THE WAY WE ALL FEEL GOOD ABOUT.

293
00:10:47,520 --> 00:10:48,240
SOME NOTES ABOUT THE STRATEGIC

294
00:10:48,240 --> 00:10:52,640
PLAN ITSELF.  EACH IACC

295
00:10:52,640 --> 00:10:55,600
STRATEGIC PLAN CHAPTER PROVIDES

296
00:10:55,600 --> 00:10:59,280
AN OVERVIEW OF RELEVANT TOPICS.

297
00:10:59,280 --> 00:11:00,840
RECENT ADVANCES, CHANGES AND

298
00:11:00,840 --> 00:11:02,320
TRENDS IN THE FIELD ANDND

299
00:11:02,320 --> 00:11:03,000
REMAIN OPPORTUNITIES

300
00:11:03,000 --> 00:11:06,400
FOR RESEARCH SERVICES AND

301
00:11:06,400 --> 00:11:07,760
POLICY. AGAIN WHEN YOU LOOK AT

302
00:11:07,760 --> 00:11:10,360
THESE CHAPTERS, IT IS NOT A FULL

303
00:11:10,360 --> 00:11:13,560
LITERATURE REVIEW OF EVERYTHING

304
00:11:13,560 --> 00:11:15,520
IN THE ENTIRE FIELD. WE HAVE TO

305
00:11:15,520 --> 00:11:18,720
KEEP IT SOMEWHAT READABLE AND

306
00:11:18,720 --> 00:11:20,280
COMPACT. WE TRY TO PROVIDE

307
00:11:20,280 --> 00:11:22,280
HIGHLIGHTS OF THINGS THAT ARE

308
00:11:22,280 --> 00:11:23,640
REALLY SIGNIFICANT, THINGS THAT

309
00:11:23,640 --> 00:11:25,680
MAY HAVE CHANGED AND MIGHT

310
00:11:25,680 --> 00:11:27,600
INFLUENCE THE DIRECTION. OF

311
00:11:27,600 --> 00:11:28,920
FEDERAL AGENCIES OR

312
00:11:28,920 --> 00:11:30,440
ORGANIZATIONS THAT ARE WORKING

313
00:11:30,440 --> 00:11:34,680
ON AUTISM. THE PLAN ALSO

314
00:11:34,680 --> 00:11:36,720
PRESENTS DIVERSE PERSPECTIVES

315
00:11:36,720 --> 00:11:38,240
FROM THE COMMUNITY AND THIS

316
00:11:38,240 --> 00:11:42,200
COMMITTEE AND WE TRY TO PRESENT

317
00:11:42,200 --> 00:11:44,120
THAT IN A RESPECTFUL INCLUSIVE

318
00:11:44,120 --> 00:11:45,240
MANNER. THE STRATEGIC PLAN IS

319
00:11:45,240 --> 00:11:46,560
ADVISORY TO THE SECRETARY AND

320
00:11:46,560 --> 00:11:48,400
FEDERAL AGENCIES AND CAN BE USED

321
00:11:48,400 --> 00:11:54,480
TO GUIDE FEDERAL AGENCY EFFORTS 

322
00:11:54,480 --> 00:11:56,840
SO I WILL PAUSE A MOMENT TO

323
00:11:56,840 --> 00:11:58,040
ALLOW FOR QUESTIONS IF ANYONE

324
00:11:58,040 --> 00:11:59,920
HAS ANY QUESTIONS ABOUT ANY OF

325
00:11:59,920 --> 00:12:03,080
THAT. AND IT IS MOSTLY REVIEW

326
00:12:03,080 --> 00:12:04,520
BUT I WANT TO MAKE SURE WE ARE

327
00:12:04,520 --> 00:12:07,400
ALL ON THE SAME PAGE AS WE ARE

328
00:12:07,400 --> 00:12:09,160
STILL A ONE YEAR COMMITTEE AT

329
00:12:09,160 --> 00:12:14,280
THIS POINT. SO NOT SEEING ANY

330
00:12:14,280 --> 00:12:15,600
RAISED HANDS SO I WILL KEEP

331
00:12:15,600 --> 00:12:17,520
MOVING. THE SEVEN QUESTION AREAS

332
00:12:17,520 --> 00:12:21,200
OF THE STRATEGIC PLAN THESE ARE

333
00:12:21,200 --> 00:12:24,000
ORGANIZED AROUND COMMUNITY BASED

334
00:12:24,000 --> 00:12:26,400
QUESTIONS SO WE HAVE SEVEN

335
00:12:26,400 --> 00:12:27,800
TOPICS QUESTION ONE IS SCREENING

336
00:12:27,800 --> 00:12:29,240
AND DIAGNOSIS. QUESTION TWO IS

337
00:12:29,240 --> 00:12:33,240
ON THE BIOLOGY OF AUTISM. 

338
00:12:33,240 --> 00:12:34,240
QUESTION 3, GENETIC AND

339
00:12:34,240 --> 00:12:36,440
ENVIRONMENT A.M. FACTORS.

340
00:12:36,440 --> 00:12:39,320
QUESTION 4 ON INTERVENTIONS.

341
00:12:39,320 --> 00:12:40,360
QUESTION 5 ON SERVICES AND

342
00:12:40,360 --> 00:12:43,400
SUPPORTS.  QUESTION 6 IS ON LIFE

343
00:12:43,400 --> 00:12:47,440
SPANISH SHOES. AND QUESTION 7 IS

344
00:12:47,440 --> 00:12:48,600
ON RESEARCH INFRASTRUCTURE AND

345
00:12:48,600 --> 00:12:56,200
PREVALENCE.  SO ADDITIONAL

346
00:12:56,200 --> 00:12:57,400
SECTIONS OF THE PLAN INCLUDING

347
00:12:57,400 --> 00:13:00,400
NEW ONES ARE THAT THE NEW IACC

348
00:13:00,400 --> 00:13:02,080
STREAM PLAN WILL ALSO INCLUDE

349
00:13:02,080 --> 00:13:03,440
TWO CROSS CUTTING THEMES THAT

350
00:13:03,440 --> 00:13:04,600
ARE CONNECTED TO ALL SEVEN

351
00:13:04,600 --> 00:13:08,840
TOPICS. THE SEX AND GENDER

352
00:13:08,840 --> 00:13:11,800
SECTION WHICH WAS FOCUSED ON

353
00:13:11,800 --> 00:13:12,880
THERE FROM THE PREVIOUS

354
00:13:12,880 --> 00:13:13,960
STRATEGIC PLAN BUT FOCUSED ON

355
00:13:13,960 --> 00:13:15,680
WOMEN AND GIRLS AND THAT IS

356
00:13:15,680 --> 00:13:18,200
EXPANDED TO HAVE A FULLER

357
00:13:18,200 --> 00:13:21,680
UNDERSTANDING OF GENDER. A NEW

358
00:13:21,680 --> 00:13:25,240
SECTION ON PROMOTING EQUITY AND

359
00:13:25,240 --> 00:13:26,000
REDUCING DISPARITIES TO

360
00:13:26,000 --> 00:13:28,400
HIGHLIGHT THAT ISSUE. THERE IS

361
00:13:28,400 --> 00:13:31,640
ALSO A SECTION ON THE IMPACT OF

362
00:13:31,640 --> 00:13:33,200
COVID-19 ON THE AUTISM COMMUNITY

363
00:13:33,200 --> 00:13:35,800
AND RESEARCH SERVICES AND POLICY

364
00:13:35,800 --> 00:13:39,360
AND WHAT LESSONS WE HAVE LEARNED

365
00:13:39,360 --> 00:13:41,360
FROM THIS EXPERIENCE. THERE ALSO

366
00:13:41,360 --> 00:13:43,280
IS A SECTION ON DESCRIBING

367
00:13:43,280 --> 00:13:44,440
PROGRESS MADE ON PREVIOUS

368
00:13:44,440 --> 00:13:50,880
STRATEGIC PLAN OBJECTIVES AND A

369
00:13:50,880 --> 00:13:51,680
BUDGET RECOMMENDATION REQUIRED

370
00:13:51,680 --> 00:13:54,760
BY THE AUTISM CARES ACT. WE MADE

371
00:13:54,760 --> 00:13:55,560
AN EFFORT THROUGHOUT THE

372
00:13:55,560 --> 00:13:58,360
STRATEGIC PLAN TO INCLUDE THEMES

373
00:13:58,360 --> 00:13:59,920
OF ACCEPTANCE AND INCLUSION OF

374
00:13:59,920 --> 00:14:01,000
INDIVIDUALS OF THE AUTISM

375
00:14:01,000 --> 00:14:03,920
SPECTRUM AND THERE IS THE NEXT

376
00:14:03,920 --> 00:14:05,600
DRAFT INCLUDES REVISIONS FOR

377
00:14:05,600 --> 00:14:07,160
PLAIN LANGUAGE. IF WE LOOK AT

378
00:14:07,160 --> 00:14:09,360
THE DRAFTS ONLINE NOW, IF YOU

379
00:14:09,360 --> 00:14:11,280
FEEL LIKE YOU HAVE CONCERNS

380
00:14:11,280 --> 00:14:12,280
ABOUT PLAIN LANGUAGE OUR TEAM

381
00:14:12,280 --> 00:14:13,920
WILL GO BACK THROUGH ONCE WE

382
00:14:13,920 --> 00:14:16,560
HAVE THE CONTENT WORKED OUT AND

383
00:14:16,560 --> 00:14:18,200
TRY TO WORK ON THE PLAIN

384
00:14:18,200 --> 00:14:20,640
LANGUAGE ASPECT TO ENSURE THAT

385
00:14:20,640 --> 00:14:23,320
IT IS AS READSABLE AS POSSIBLE. 

386
00:14:23,320 --> 00:14:24,880
WE ALSO CREATE SOME KIND OF

387
00:14:24,880 --> 00:14:28,720
EXECUTIVE SUMMARY OR SHORTER

388
00:14:28,720 --> 00:14:29,960
VERSION THAT CAN BE AN EASY READ

389
00:14:29,960 --> 00:14:37,320
VERSION.  SO WITH THAT, I DON'T

390
00:14:37,320 --> 00:14:38,280
KNOW IF THERE'S QUESTIONS ABOUT

391
00:14:38,280 --> 00:14:40,760
THAT THAT I SHARED? WE WILL BE

392
00:14:40,760 --> 00:14:42,560
READY TO START IN ON QUESTION

393
00:14:42,560 --> 00:14:44,600
ONE, SO WE ARE A LITTLE AHEAD OF

394
00:14:44,600 --> 00:14:46,040
SCHEDULE, THAT MEANS WE MIGHT

395
00:14:46,040 --> 00:14:48,800
HAVE A FEW EXTRA MINUTES.  

396
00:14:48,800 --> 00:14:49,960
THROUGHOUT TODAY TO BE ABLE TO

397
00:14:49,960 --> 00:14:58,040
TALK ABOUT SOME OF THESE AREAS. 

398
00:14:58,040 --> 00:15:00,520
AS EACH CHAPTER HAS COMMUNITY

399
00:15:00,520 --> 00:15:01,880
ASSOCIATED QUESTION THAT

400
00:15:01,880 --> 00:15:03,760
CAPTURES THE THEME IN BRIEF AND

401
00:15:03,760 --> 00:15:08,760
OVERWOVERARCHING GOAL, THE QUES1

402
00:15:08,760 --> 00:15:10,560
WAS TAKEN BY THE TEAM AND

403
00:15:10,560 --> 00:15:12,360
SHORTEN AND TRIED TO MAKE BRIEF

404
00:15:12,360 --> 00:15:14,560
AND EASY TO UNDERSTAND, HOW CAN

405
00:15:14,560 --> 00:15:16,160
WE IMPROVE IDENTIFICATION OF

406
00:15:16,160 --> 00:15:23,360
AUTISM? WITHIN THIS QUESTION IT

407
00:15:23,360 --> 00:15:26,040
COVERS SCREENING AND DIAGNOSIS

408
00:15:26,040 --> 00:15:28,920
RESEARCH TOOLS AND TECHNOLOGY

409
00:15:28,920 --> 00:15:31,840
EARLY SIGNS AND BIOMARKERS,

410
00:15:31,840 --> 00:15:35,680
DISPARITIES IN AUTISM SCREENING

411
00:15:35,680 --> 00:15:37,240
DIAGNOSIS ACCESS TO SCREENING

412
00:15:37,240 --> 00:15:39,200
DIAGNOSIS SERVICES, SYSTEMS

413
00:15:39,200 --> 00:15:42,920
NAVIGATION AND WORK FORCE NEEDS.

414
00:15:42,920 --> 00:15:45,440
AND IT TOUCHES ON ADULT

415
00:15:45,440 --> 00:15:46,720
DIAGNOSIS, THOUGH ELABORATED

416
00:15:46,720 --> 00:15:50,040
UPON MORE IN QUESTION 6. THE

417
00:15:50,040 --> 00:15:51,720
DISCUSSION QUESTIONS THAT I HAVE

418
00:15:51,720 --> 00:15:53,960
FOR YOU ARE ARE THERE ANY OTHER

419
00:15:53,960 --> 00:15:55,440
IMPORTANT TOPICS OR POINTS THAT

420
00:15:55,440 --> 00:15:58,760
NEED TO BE INCLUDED IN THIS

421
00:15:58,760 --> 00:16:02,600
SECTION? SO NOT NECESSARILY

422
00:16:02,600 --> 00:16:04,360
SAYING THE CHAPTER THAT IS

423
00:16:04,360 --> 00:16:05,880
ONLINE BECAUSE I KNOW YOU DIDN'T

424
00:16:05,880 --> 00:16:07,120
NECESSARILY HAVE TIME TO READ IT

425
00:16:07,120 --> 00:16:09,080
BUT I WANT YOU TO BRING OUT ANY

426
00:16:09,080 --> 00:16:10,920
REALLY IMPORTANT POINTS THAT YOU

427
00:16:10,920 --> 00:16:12,720
WANT TO SEE INCLUDED IN THIS

428
00:16:12,720 --> 00:16:13,920
CHAPTER AND IF YOU FEEL THERE

429
00:16:13,920 --> 00:16:16,400
HAVE BEEN RECENT SIGNIFICANT

430
00:16:16,400 --> 00:16:18,200
CHANGES IN THIS FIELD SINCE THE

431
00:16:18,200 --> 00:16:19,600
LAST STRATEGIC PLAN WAS ISSUED

432
00:16:19,600 --> 00:16:21,440
THAT WOULD IMPACT THE DIRECTION

433
00:16:21,440 --> 00:16:22,840
SO WE CAN MAKE SURE THAT WE ARE

434
00:16:22,840 --> 00:16:25,920
COMPLETELY UP TO DATE SO I'M

435
00:16:25,920 --> 00:16:29,360
GOING TO FIRST GO TO STEVEN AS

436
00:16:29,360 --> 00:16:31,480
HE HAS A COMMENT SHARED BY

437
00:16:31,480 --> 00:16:34,280
SOMEBODY WHO WOULD LIKE THEIR

438
00:16:34,280 --> 00:16:35,520
COMMENT READ SO STEVEN.

439
00:16:35,520 --> 00:16:39,320
>> THIS QUESTION IS FROM

440
00:16:39,320 --> 00:16:40,000
(INAUDIBLE) THE QUESTION HOW

441
00:16:40,000 --> 00:16:44,400
MUCH TIME WILL WE HAVE TO REVIEW

442
00:16:44,400 --> 00:16:44,800
THE OCTOBER DRAFT?

443
00:16:44,800 --> 00:16:46,560
>> YOU WILL BE RECEIVING
THE

444
00:16:46,560 --> 00:16:48,160
OCTOBER DRAFT AT THE BEGINNING

445
00:16:48,160 --> 00:16:50,080
OF OCTOBER. THE MEETING IS ON

446
00:16:50,080 --> 00:16:55,200
THE 26TH. SO IT WILL BE COUPLE

447
00:16:55,200 --> 00:17:00,600
OF WEEKS, MAYBE THREE WEEKS OR

448
00:17:00,600 --> 00:17:00,760
SO,

449
00:17:00,760 --> 00:17:01,160
>> THANK YOU.

450
00:17:01,160 --> 00:17:02,120
>> YOU ARE WELCOME.

451
00:17:02,120 --> 00:17:03,240
>> I HAVE A QUESTION ON
THIS

452
00:17:03,240 --> 00:17:07,680
ONE. IS IT WITHIN OUR WHEEL

453
00:17:07,680 --> 00:17:10,480
HOUSE OR APPROPRIATE IN ANY WAY

454
00:17:10,480 --> 00:17:13,720
TO TALK ABOUT WORK FORCE

455
00:17:13,720 --> 00:17:17,360
DEVELOPMENT AND TRAINING AS IT

456
00:17:17,360 --> 00:17:19,760
APPLIES TO PROVIDERS WHO WILL BE

457
00:17:19,760 --> 00:17:22,600
DOING DIAGNOSTICS, I KNOW THE

458
00:17:22,600 --> 00:17:24,360
AMERICAN DENTAL ASSOCIATION HAS

459
00:17:24,360 --> 00:17:28,240
MANDATED THAT WE DO PROVIDE

460
00:17:28,240 --> 00:17:29,560
TRAINING FOR ALL DENTISTS TO

461
00:17:29,560 --> 00:17:32,040
WORK WITH PEOPLE WITH

462
00:17:32,040 --> 00:17:33,320
INTELLECTUAL DEVELOPMENTAL

463
00:17:33,320 --> 00:17:34,480
DISABILITIES. I KNOW THEY WERE

464
00:17:34,480 --> 00:17:35,360
IN A CONVERSATION WITH THE

465
00:17:35,360 --> 00:17:40,240
AMERICAN MEDICAL ASSOCIATION AND

466
00:17:40,240 --> 00:17:43,320
THE NSAR AUTISTIC RESEARCHERS

467
00:17:43,320 --> 00:17:45,880
GROUP WRITING SUPPLEMENTS TO

468
00:17:45,880 --> 00:17:47,880
PEDIATRICS, THE JOURNAL. I DON'T

469
00:17:47,880 --> 00:17:49,200
KNOW IF IT IS WITHIN AN

470
00:17:49,200 --> 00:17:50,720
APPROPRIATE FRAMEWORK FOR US TO

471
00:17:50,720 --> 00:17:55,200
TALK ABOUT THE FACT THAT SO MANY

472
00:17:55,200 --> 00:17:56,680
PEOPLE -- CHILDREN ARE NOT

473
00:17:56,680 --> 00:17:59,320
DIAGNOSED IN A TIMELY FASHION

474
00:17:59,320 --> 00:18:02,040
BECAUSE AUTISM IS AN AFTER

475
00:18:02,040 --> 00:18:03,560
THOUGHT OR SPECIALTY RATHER THAN

476
00:18:03,560 --> 00:18:08,640
IT BEING PART OF GENERALIZED

477
00:18:08,640 --> 00:18:09,440
TRAINING FOR PROVIDERS.

478
00:18:09,440 --> 00:18:13,440
>> THAT IS RELEVANT, THANK
YOU,

479
00:18:13,440 --> 00:18:15,480
DINA. WE HAVE MORE OF THAT IN

480
00:18:15,480 --> 00:18:17,360
QUESTION 5. HOWEVER WE HAVE SOME

481
00:18:17,360 --> 00:18:18,880
INFORMATION ABOUT WORK FORCE

482
00:18:18,880 --> 00:18:20,800
NEEDS SPECIFIC TO SCREENING AND

483
00:18:20,800 --> 00:18:23,800
DIAGNOSIS HERE. THANKS FOR THAT

484
00:18:23,800 --> 00:18:27,320
COMMENT. WE WILL TAKE THAT INTO

485
00:18:27,320 --> 00:18:31,320
CONSIDERATION. JENNIFER JOHNSON.

486
00:18:31,320 --> 00:18:36,880
>> I HAVE A COUPLE OF --
ONE

487
00:18:36,880 --> 00:18:39,080
SUGGESTION THEN A QUESTION. ONE

488
00:18:39,080 --> 00:18:40,760
AREA WE MIGHT WANT TO THINK

489
00:18:40,760 --> 00:18:44,480
ABOUT INCLUDING EVEN THOUGH NOT

490
00:18:44,480 --> 00:18:45,240
SPECIFICALLY RELATED TO

491
00:18:45,240 --> 00:18:50,480
DIAGNOSIS OF AUTISM, BUT IS

492
00:18:50,480 --> 00:18:51,960
IMPORTANT IS ALSO DIAGNOSING FOR

493
00:18:51,960 --> 00:18:56,560
NICO OCCURRING CONDITIONS THAT

494
00:18:56,560 --> 00:18:58,200
AN INDIVIDUAL MIGHT HAVE WE ARE

495
00:18:58,200 --> 00:19:00,240
HEARING A LOT ABOUT DIFFICULTY

496
00:19:00,240 --> 00:19:06,960
IN BEING ABLE TO ADEQUATELY

497
00:19:06,960 --> 00:19:12,440
AUTISM VERSUS MENTAL HEALTH

498
00:19:12,440 --> 00:19:16,960
DISABILITY. CO-OCCURRING SO AN

499
00:19:16,960 --> 00:19:19,160
IMPORTANT ISSUE THE COMMITTEE

500
00:19:19,160 --> 00:19:21,360
MIGHT CONSIDER INCLUDING IN THIS

501
00:19:21,360 --> 00:19:24,560
QUESTION. OFFER THAT. THEN

502
00:19:24,560 --> 00:19:26,480
QUESTION ABOUT ACCESS TO

503
00:19:26,480 --> 00:19:29,240
SCREENING AND DIAGNOSTICS, DOES

504
00:19:29,240 --> 00:19:33,160
THAT INCLUDE ANYTHING RELATED TO

505
00:19:33,160 --> 00:19:34,200
PUBLICLY FUNDED SUPPORTS THAT

506
00:19:34,200 --> 00:19:37,920
MIGHT BE AVAILABLE TO PAY FOR

507
00:19:37,920 --> 00:19:39,560
ACCESS TO SCREENING AND

508
00:19:39,560 --> 00:19:40,600
DIAGNOSIS? I JUST CAN'T REMEMBER

509
00:19:40,600 --> 00:19:42,360
IF THAT IS IN THE PLAN OR NOT.

510
00:19:42,360 --> 00:19:43,040
>> WE CAN MENTION
SOMETHING

511
00:19:43,040 --> 00:19:45,120
ABOUT IT IT. DO YOU HAVE SOMETHG

512
00:19:45,120 --> 00:19:46,800
SPECIFIC IN MIND?

513
00:19:46,800 --> 00:19:50,080
>> I KNOW THERE IS PART C

514
00:19:50,080 --> 00:19:50,720
UNDEFILED FINE AND I DON'T KNOW

515
00:19:50,720 --> 00:19:52,600
IF THERE IS RESEARCH, I CAN'T

516
00:19:52,600 --> 00:19:54,320
RECALL IF IT IS IN THERE, IF

517
00:19:54,320 --> 00:19:55,960
THERE'S QUESTIONS RELATED TO

518
00:19:55,960 --> 00:20:00,000
THAN AND ALSO EPSDT UNDER

519
00:20:00,000 --> 00:20:03,360
MEDICARE AN MEDICAID. WHETHER --

520
00:20:03,360 --> 00:20:05,800
SORRY MEDICAID AND WHETHER THAT

521
00:20:05,800 --> 00:20:09,200
AGAIN IS REFERENCED IN THE PLAN.

522
00:20:09,200 --> 00:20:10,680
IF NOT WE NEED TO MAKE SURE

523
00:20:10,680 --> 00:20:12,040
THOSE THINGS ARE INCLUDED.

524
00:20:12,040 --> 00:20:14,160
>> THANK YOU FOR BOTH OF
THOSE

525
00:20:14,160 --> 00:20:17,440
COMMENTS AS WELL. AND I AGREE IT

526
00:20:17,440 --> 00:20:18,920
IS A THEME WITHIN THE COMMITTEE

527
00:20:18,920 --> 00:20:20,240
NOW FOR SEVERAL YEARS ONCO

528
00:20:20,240 --> 00:20:24,720
OCCURRING CONDITIONS AND WE

529
00:20:24,720 --> 00:20:26,880
TRIED TO LEAVE THAT IN THE PARTS

530
00:20:26,880 --> 00:20:29,640
OF THE PLAN BUT WE WANTED TO

531
00:20:29,640 --> 00:20:31,160
CO-OCCURRING CONDITIONS AND

532
00:20:31,160 --> 00:20:32,320
DISTINGUISHING THEM FROM AUTISM

533
00:20:32,320 --> 00:20:40,240
FEATURES IS REALLY IMPORTANT.

534
00:20:40,240 --> 00:20:41,560
>> ALICE CARTER.

535
00:20:41,560 --> 00:20:44,560
>> I WANTED TO SECOND THE

536
00:20:44,560 --> 00:20:45,800
CO-OCCURRING MENTAL HEALTH

537
00:20:45,800 --> 00:20:46,680
CONDITIONS DIFFERENTIAL

538
00:20:46,680 --> 00:20:48,720
DIAGNOSIS, A LOT OF TIMES AUTISM

539
00:20:48,720 --> 00:20:51,720
CLINICS ARE SET UP AS AUTISM OR

540
00:20:51,720 --> 00:20:55,280
NOT AND NOT LOOKING AT THE WHOLE

541
00:20:55,280 --> 00:20:56,640
CHILD BUT ALSO IN TERMS OF WORK

542
00:20:56,640 --> 00:20:59,560
FORCE DEVELOPMENT FOR SCREENING

543
00:20:59,560 --> 00:21:01,600
A LOT OF TIMES THERE IS FOCUS ON

544
00:21:01,600 --> 00:21:03,520
THE TOOLS AND TECHNOLOGY AND

545
00:21:03,520 --> 00:21:05,440
THERE'S LESS FOCUS ON TRAINING

546
00:21:05,440 --> 00:21:09,040
PEOPLE TO HAVE THE CONVERSATIONS

547
00:21:09,040 --> 00:21:12,000
OF EXPLAINING THE LIMITS OF THE

548
00:21:12,000 --> 00:21:15,000
TOOLS BUT ALSO HELPING PEOPLE

549
00:21:15,000 --> 00:21:16,240
ALONG IN THE PROCESS OF

550
00:21:16,240 --> 00:21:17,400
UNDERSTANDING WHAT IT MEANS FOR

551
00:21:17,400 --> 00:21:21,840
CHILD TO HAVE AUTISM. SO IN OUR

552
00:21:21,840 --> 00:21:24,720
WORK WE ARE USING TOOLS THAT ARE

553
00:21:24,720 --> 00:21:26,840
EVIDENCE BASED. BUT THE BIGGEST

554
00:21:26,840 --> 00:21:30,200
WORK WE HAVE ENCOUNTERED IS

555
00:21:30,200 --> 00:21:32,280
HELPING CLINICIANS FEEL

556
00:21:32,280 --> 00:21:34,160
COMFORTABLE WHETHER PEDIATRICS

557
00:21:34,160 --> 00:21:37,480
OR EARLY INTERVENTION, HELPING

558
00:21:37,480 --> 00:21:38,600
CLINICIANS FEEL COMFORTABLE

559
00:21:38,600 --> 00:21:43,760
TALKING AUTISM WITH FAMILIES.

560
00:21:43,760 --> 00:21:46,480
AND ALSO RECOGNIZING THAT THERE

561
00:21:46,480 --> 00:21:48,800
IS A PROCESS FAMILIES ARE GOING

562
00:21:48,800 --> 00:21:52,720
THROUGH, THEY NEED TO WHILE

563
00:21:52,720 --> 00:21:55,600
NUDGING GENTLY ALSO GIVE PARENTS

564
00:21:55,600 --> 00:21:59,400
TIME TO MOVE AT THEIR OWN PACE. 

565
00:21:59,400 --> 00:22:00,960
RELY ON RELATIONSHIPS TO HELP

566
00:22:00,960 --> 00:22:02,080
FAMILIES MOVE THROUGH A

567
00:22:02,080 --> 00:22:05,960
SCREENING TO DIAGNOSIS PROCESS. 

568
00:22:05,960 --> 00:22:10,800
SO I WANT THE RELATIONAL PIECE

569
00:22:10,800 --> 00:22:12,080
AND THE DIFFICULTY LEARNING HOW

570
00:22:12,080 --> 00:22:13,200
TO HAVE THESE CONVERSATIONS AS

571
00:22:13,200 --> 00:22:17,160
PART OF THE WORK FORCE

572
00:22:17,160 --> 00:22:18,040
DEVELOPMENT IN WITH THESE ARE

573
00:22:18,040 --> 00:22:24,160
THE TOOLS.  DO YOU THINK

574
00:22:24,160 --> 00:22:29,160
SPECIFIC TRAININGS, WHAT KIND OF

575
00:22:29,160 --> 00:22:29,280
--

576
00:22:29,280 --> 00:22:30,040
SPEAKER5: IT WOULD BE GREAT TO

577
00:22:30,040 --> 00:22:31,000
HAVE THAT. I DON'T KNOW THAT

578
00:22:31,000 --> 00:22:32,480
THERE ARE TRAININGS OUT THERE

579
00:22:32,480 --> 00:22:35,840
THAT ARE PACKAGED ALREADY FOR

580
00:22:35,840 --> 00:22:38,240
THIS. BECAUSE WE WERE WORKING IN

581
00:22:38,240 --> 00:22:39,840
EARLY INTERVENTION WHICH IS NOT

582
00:22:39,840 --> 00:22:41,520
HISTORICALLY A SITE FOR

583
00:22:41,520 --> 00:22:43,760
SCREENING FOR AUTISM, AND SOME

584
00:22:43,760 --> 00:22:45,240
EARLY INTERVENTION PROGRAMS LIKE

585
00:22:45,240 --> 00:22:48,560
AVOID TALKING ABOUT AUTISM.

586
00:22:48,560 --> 00:22:50,560
BECAUSE PROVIDERS AREN'T ALLOWED

587
00:22:50,560 --> 00:22:52,240
TO DIAGNOSE, WE DID A TON OF

588
00:22:52,240 --> 00:22:55,240
WORK TO HELP PROVIDERS HAVE

589
00:22:55,240 --> 00:22:57,200
THESE DIFFICULT CONVERSATIONS

590
00:22:57,200 --> 00:22:59,520
BUT THAT WAS I FEEL AT T THE

591
00:22:59,520 --> 00:23:02,440
HARDEST WORK. TRAINING TO DO

592
00:23:02,440 --> 00:23:03,600
ASSESSMENT TOOL WHEN THEY ARE

593
00:23:03,600 --> 00:23:05,960
USED TO DOING ASSESSMENTS, NOT

594
00:23:05,960 --> 00:23:08,080
THAT HARD, UNDERSTANDING WHAT

595
00:23:08,080 --> 00:23:10,160
AUTISM IS, PROFESSIONALS WORKING

596
00:23:10,160 --> 00:23:12,640
WITH KIDS ON AUTISTIC KIDS A

597
00:23:12,640 --> 00:23:15,640
LOT.  NOT SO DIFFICULT. YOU CAN

598
00:23:15,640 --> 00:23:19,440
HELP REFINE THEIR UNDERSTANDING

599
00:23:19,440 --> 00:23:21,560
BUT REAL PART WAS OPENING THE

600
00:23:21,560 --> 00:23:23,160
CONVERSATION BECAUSE THEY WERE

601
00:23:23,160 --> 00:23:25,720
JUST REALLY NOT PREPARED FOR

602
00:23:25,720 --> 00:23:25,920
THAT.

603
00:23:25,920 --> 00:23:29,600
>> GREAT. THANK YOU. WE
WILL

604
00:23:29,600 --> 00:23:33,960
TAKE THAT INTO ACCOUNT. I WILL

605
00:23:33,960 --> 00:23:39,840
MOVE ON TO SCOTT ROBERTSON.

606
00:23:39,840 --> 00:23:42,200
>> THANKS, I CONCUR WITH
WHAT

607
00:23:42,200 --> 00:23:45,000
HAS BEEN SAID AS FAR AS

608
00:23:45,000 --> 00:23:47,120
CO-OCCURRING CONDITIONS, MENTAL

609
00:23:47,120 --> 00:23:48,680
HEALTH CONDITIONS, ET CETERA,

610
00:23:48,680 --> 00:23:52,680
EDUCATING PROVIDERS AND I THINK

611
00:23:52,680 --> 00:23:53,760
THAT FITS INTO THE SPACE IN

612
00:23:53,760 --> 00:23:56,880
TERMS OF BIASES THAT ARE OUT

613
00:23:56,880 --> 00:23:58,560
THERE ABOUT AUTISM THAT I THINK

614
00:23:58,560 --> 00:24:01,640
IS REALLY IMPORTANT ON THE

615
00:24:01,640 --> 00:24:03,400
DIAGNOSIS PART OF THIS SECTION

616
00:24:03,400 --> 00:24:07,160
OF THE STRATEGIC PLAN IS REALLY

617
00:24:07,160 --> 00:24:08,680
IMPORTANT. WE ARE ONLY TALKING

618
00:24:08,680 --> 00:24:13,040
NEW TOPPINGS BUT THAT FITS INTO

619
00:24:13,040 --> 00:24:15,480
LANGUAGE IN HERE GOLD STANDARD

620
00:24:15,480 --> 00:24:18,120
FOR -- THINGS LIKE THAT, WAYS TO

621
00:24:18,120 --> 00:24:20,240
-- WHEN WE GET TO PHRASING THAT

622
00:24:20,240 --> 00:24:22,080
COULD BE ADJUSTED TO BE A LITTLE

623
00:24:22,080 --> 00:24:24,120
MORE NEUTRAL IN TERMINOLOGY BUT

624
00:24:24,120 --> 00:24:28,840
ONE OF THE ALSO NEWER ELEMENTS

625
00:24:28,840 --> 00:24:31,160
IN HERE TOO IS TRAININGS ON HOW

626
00:24:31,160 --> 00:24:36,120
TO ADDRESS CERTAIN BIASES AROUND

627
00:24:36,120 --> 00:24:38,000
AUTISM. SOMETIMES

628
00:24:38,000 --> 00:24:39,000
PROGNOSTICATION, I KNOW I HAVE

629
00:24:39,000 --> 00:24:41,160
BEEN USING A COMPLEX WORD BUT

630
00:24:41,160 --> 00:24:42,720
ASSERTIONS BY CLINICIANS OF OH

631
00:24:42,720 --> 00:24:44,280
YOU ARE NOT CAPABLE OF DOING

632
00:24:44,280 --> 00:24:47,720
THIS OR THAT. THAT IS COMMONLY

633
00:24:47,720 --> 00:24:49,400
HAPPENING FOR CHILDREN

634
00:24:49,400 --> 00:24:50,840
ADOLESCENTS AND FAMILY WHEN THEY

635
00:24:50,840 --> 00:24:53,960
RECEIVE DIAGNOSIS THAT

636
00:24:53,960 --> 00:24:55,720
CLINICIANS ARE MAKING ASSERTIONS

637
00:24:55,720 --> 00:24:56,720
ABOUT AUTISM THAT ARE FRANKLY

638
00:24:56,720 --> 00:24:59,960
NOT TRUE. AND IN SOME CASES

639
00:24:59,960 --> 00:25:01,680
CLINICIANS WHO HAVE NOT

640
00:25:01,680 --> 00:25:04,200
INTERACTED WITH AUTISTIC PEOPLE,

641
00:25:04,200 --> 00:25:05,440
DON'T HAVE REALLY GOOD

642
00:25:05,440 --> 00:25:06,520
UNDERSTANDING ABOUT AUTISM

643
00:25:06,520 --> 00:25:08,200
ACROSS THE LIFE SPAN AND THE

644
00:25:08,200 --> 00:25:10,200
HUMAN LIVED EXPERIENCE. AND

645
00:25:10,200 --> 00:25:13,000
SUPPORTS AND SERVICES AN ACCESS

646
00:25:13,000 --> 00:25:14,480
HUMAN RIGHTS ELEMENTS. SO I

647
00:25:14,480 --> 00:25:16,280
THINK THAT IS A KEY ELEMENT TOO

648
00:25:16,280 --> 00:25:19,840
FOR THE DIAGNOSIS PORTION IS

649
00:25:19,840 --> 00:25:22,200
TRYING TO ADDRESS THESE BIASES,

650
00:25:22,200 --> 00:25:24,080
THAT ARE PREVALENT AMONG

651
00:25:24,080 --> 00:25:26,000
CLINICIANS ON CONSTANTLY HAVE

652
00:25:26,000 --> 00:25:27,520
INTERACTED WITH FAMILIES AND

653
00:25:27,520 --> 00:25:31,640
AUTISTIC PEOPLE OVER THE YEARS

654
00:25:31,640 --> 00:25:35,560
ON REALLY WORRISOME AND

655
00:25:35,560 --> 00:25:38,360
CONCERNING ASSERTIONS MADE BY

656
00:25:38,360 --> 00:25:41,040
CLINICIANS WHEN INDIVIDUAL

657
00:25:41,040 --> 00:25:42,240
ESPECIALLY YOUNG IT TENDS TO BE

658
00:25:42,240 --> 00:25:44,600
SOMETIMES MORE PREVALENT WHEN A

659
00:25:44,600 --> 00:25:47,920
KID IS YOUNGER WHERE FOLKS WILL

660
00:25:47,920 --> 00:25:51,040
STATE THINGS WHERE THEY HAVE NO

661
00:25:51,040 --> 00:25:53,800
IDEA ABOUT LONG TERM PATHWAY IS

662
00:25:53,800 --> 00:25:55,360
LIKE FOR THAT INDIVIDUAL,

663
00:25:55,360 --> 00:25:57,680
STATING THINGS THAT UNDER THEIR

664
00:25:57,680 --> 00:26:01,000
BELIEF SYSTEM THAT ARE NOT TRUE

665
00:26:01,000 --> 00:26:02,480
SO I WONDER IF WE CAN FIT THAT

666
00:26:02,480 --> 00:26:04,520
INTO THE PLAN SECTION HERE ON

667
00:26:04,520 --> 00:26:06,880
THE DIAGNOSIS PORTION, THESE

668
00:26:06,880 --> 00:26:08,280
BIASES IN CLINICIANS AND WHAT

669
00:26:08,280 --> 00:26:10,720
CAN BE DONE TO HELP ADDRESS THAT

670
00:26:10,720 --> 00:26:12,080
AND THAT FITS INTO RESEARCH TOO,

671
00:26:12,080 --> 00:26:14,280
MORE RESEARCH ON THE AREA ON

672
00:26:14,280 --> 00:26:17,240
HELPING TO ADDRESS BIASES ABOUT

673
00:26:17,240 --> 00:26:18,600
AUTISM QUALITY OF LIFE, THE

674
00:26:18,600 --> 00:26:20,040
LIVED EXPERIENCE AND HEALTH AND

675
00:26:20,040 --> 00:26:21,200
WELLNESS AMONG CLINICIANS

676
00:26:21,200 --> 00:26:22,840
INCLUDING THE DIAGNOSTIC PROCESS

677
00:26:22,840 --> 00:26:25,320
AND DIAGNOSTIC TOOLS.

678
00:26:25,320 --> 00:26:27,040
>> THANK YOU FOR THAT
COMMENT.

679
00:26:27,040 --> 00:26:29,520
SOUNDS LIKE IT COULD FIT IN WITH

680
00:26:29,520 --> 00:26:31,160
SOME OF THE THINGS ALISON IS

681
00:26:31,160 --> 00:26:32,520
TALKING ABOUT TOO BUT YOU

682
00:26:32,520 --> 00:26:33,680
DESCRIBE THAT IT COULD FIT IN

683
00:26:33,680 --> 00:26:35,680
OTHER ASPECTS OF THE STRATEGIC

684
00:26:35,680 --> 00:26:37,920
PLAN SO THANKS FOR THAT COMMENT 

685
00:26:37,920 --> 00:26:40,800
>> YOU ARE IN AGREEMENT,
ALICE?

686
00:26:40,800 --> 00:26:47,480
>> I AGREE. AND YEAH. I
THINK

687
00:26:47,480 --> 00:26:50,040
HAVING TO PROCESS WITH FAMILIES

688
00:26:50,040 --> 00:26:51,560
ABOUT THINGS THAT PROVIDERS HAVE

689
00:26:51,560 --> 00:26:55,000
SAID TO THEM IS NOT ATYPICAL. 

690
00:26:55,000 --> 00:27:00,400
UNFORTUNATELY. OR UNCOMMON.

691
00:27:00,400 --> 00:27:05,280
>> THANK YOU. I'M GOING TO
GO TO

692
00:27:05,280 --> 00:27:06,320
STEVEN FOR A COMMENT SOMEBODY

693
00:27:06,320 --> 00:27:06,600
WROTE IN.

694
00:27:06,600 --> 00:27:10,800
>> THIS IS FROM JENNY

695
00:27:10,800 --> 00:27:12,840
(INAUDIBLE) THIS MAY FALL UNDER

696
00:27:12,840 --> 00:27:14,840
DISPARITIES FOR AUTISM SCREENING

697
00:27:14,840 --> 00:27:16,600
AND DIAGNOSIS, THE QUESTION IS

698
00:27:16,600 --> 00:27:18,080
WILL WE BE ABLE TO EMPHASIZE AS

699
00:27:18,080 --> 00:27:20,800
SUB TOPIC CULTURAL COMPETENCY

700
00:27:20,800 --> 00:27:23,720
TRAININGS FOR DIAGNOSTICS AND

701
00:27:23,720 --> 00:27:24,480
PROFESSIONAL?

702
00:27:24,480 --> 00:27:26,000
SECOND SUB TOPIC THAT PERHAPS

703
00:27:26,000 --> 00:27:29,440
COULD BE EMPHASIZED IS LANGUAGE

704
00:27:29,440 --> 00:27:30,840
INTERPRETERS SLASH TRANSLATIONS

705
00:27:30,840 --> 00:27:35,040
FOR NON-ENGLISH COMMUNICATORS. 

706
00:27:35,040 --> 00:27:36,520
>> I BELIEVE THAT IS IN
THE

707
00:27:36,520 --> 00:27:39,880
CHAPTER BUT CERTAINLY AN

708
00:27:39,880 --> 00:27:41,760
IMPORTANT POINT SO THANK YOU FOR

709
00:27:41,760 --> 00:27:43,320
SHARING THAT I BELIEVE IT IS

710
00:27:43,320 --> 00:27:45,000
ALSO IN DISPARITIES SECTION BUT

711
00:27:45,000 --> 00:27:49,840
WE CAN GO BACK AND LOOK AT THAT 

712
00:27:49,840 --> 00:27:51,960
NEXT TO PAUL WONG.

713
00:27:51,960 --> 00:27:58,360
>> HI, THANK YOU. I WANTED
TO

714
00:27:58,360 --> 00:28:00,920
UNDERSCORE ELABORATE ON POINTS

715
00:28:00,920 --> 00:28:01,920
MADE BY YOU AND OTHER COMMITTEE

716
00:28:01,920 --> 00:28:04,200
MEMBERS. THE FINE POINT SCOTT

717
00:28:04,200 --> 00:28:06,200
MADE ABOUT THE ADOS. REALLY

718
00:28:06,200 --> 00:28:10,640
IMPORTANT NOT TO ENSHRINE THAT

719
00:28:10,640 --> 00:28:13,080
FEE ASSESSMENT IS NECESSARY FOR

720
00:28:13,080 --> 00:28:16,720
EVERYBODY TO DIAGNOSTIC PROCESS.

721
00:28:16,720 --> 00:28:20,080
I BELIEVE STRONGLY AND OTHERS

722
00:28:20,080 --> 00:28:21,320
DO, IT IS NOT NECESSARY THE WORD

723
00:28:21,320 --> 00:28:22,880
IS CAREFUL THERE. THE OTHER

724
00:28:22,880 --> 00:28:26,080
POINTS I WANT TO MAKE IS IT IS

725
00:28:26,080 --> 00:28:30,800
REALLY IMPORTANT TO ADDRESS

726
00:28:30,800 --> 00:28:32,520
BETWEEN SCREENING AND DIAGNOSIS.

727
00:28:32,520 --> 00:28:33,640
MANY CHILDREN UNFORTUNATELY

728
00:28:33,640 --> 00:28:35,880
SCREEN POSITIVE YET NOT REFERRED

729
00:28:35,880 --> 00:28:37,760
FOR THOROUGH DIAGNOSIS. AND

730
00:28:37,760 --> 00:28:38,840
THERE ARE OTHERS WHO ARE

731
00:28:38,840 --> 00:28:42,880
REFERRED FOR THOROUGH DIAGNOSE

732
00:28:42,880 --> 00:28:44,040
BUT NEVER MAKE IT THERE. RELATED

733
00:28:44,040 --> 00:28:45,600
TO SYSTEMS NAVIGATION BUT THAT

734
00:28:45,600 --> 00:28:47,240
ISSUE IS IMPORTANT TO THINK

735
00:28:47,240 --> 00:28:49,320
ABOUT EVEN BEFORE DIAGNOSIS, NOT

736
00:28:49,320 --> 00:28:50,800
ONLY AFTER DIAGNOSIS ON THE WAY

737
00:28:50,800 --> 00:28:52,280
TO SERVICES BECAUSE THERE IS

738
00:28:52,280 --> 00:28:54,120
THAT GAP BETWEEN SCREENING AND

739
00:28:54,120 --> 00:28:56,520
DIAGNOSIS. THE OTHER POINTS,

740
00:28:56,520 --> 00:28:57,960
RELATED TO ALL THIS, OF COURSE,

741
00:28:57,960 --> 00:29:04,000
IS THE WORK FORCE NEEDS. I

742
00:29:04,000 --> 00:29:08,720
FRANKLY THINK ONE FACTORS THE

743
00:29:08,720 --> 00:29:09,360
AVERAGE SIZE OF THE WORK FORCE

744
00:29:09,360 --> 00:29:11,280
WE HAVE IS THE INADEQUATE

745
00:29:11,280 --> 00:29:13,640
COMPENSATION FOR PEOPLE ENGAGED

746
00:29:13,640 --> 00:29:18,080
IN DIAGNOSES. THAT IS AN ISSUE

747
00:29:18,080 --> 00:29:20,480
THAT NEEDS TO BE LOOKED AT AND

748
00:29:20,480 --> 00:29:24,960
THOUGHT ABOUT POTENTIALLY

749
00:29:24,960 --> 00:29:25,240
ADDRESSED.

750
00:29:25,240 --> 00:29:28,920
>> THANK YOU SO MUCH. ALSO

751
00:29:28,920 --> 00:29:29,920
IMPORTANT POINTS, EVERYTHING

752
00:29:29,920 --> 00:29:32,360
EVERYONE IS SHARING IS HELPFUL.

753
00:29:32,360 --> 00:29:35,800
THANK YOU. NEXT TAKE A COMMENT

754
00:29:35,800 --> 00:29:39,200
FROM JILLIAN PRINCE.

755
00:29:39,200 --> 00:29:41,320
>> EXCELLENT. THANK YOU.
CAN YOU

756
00:29:41,320 --> 00:29:41,840
HEAR ME?

757
00:29:41,840 --> 00:29:43,200
>> UH-HUH.

758
00:29:43,200 --> 00:29:44,840
>> THANK YOU. I HAVE
QUESTIONS,

759
00:29:44,840 --> 00:29:47,040
I KNOW WE ARE GOING TO GET MORE

760
00:29:47,040 --> 00:29:52,160
SPECIFIC LATER ON ABOUT ADULTS,

761
00:29:52,160 --> 00:29:55,000
BUT THERE COULD BE SOMETHING

762
00:29:55,000 --> 00:29:57,560
VERY IMPORTANT TO TRACK AND DO A

763
00:29:57,560 --> 00:30:00,520
STUDY LONGITUDINALLY AS MUCH AS

764
00:30:00,520 --> 00:30:06,080
POSSIBLE TO SEE HOW AUTISM IS

765
00:30:06,080 --> 00:30:08,240
MANIFEST IN AN INDIVIDUAL AS A

766
00:30:08,240 --> 00:30:12,000
CHILD AND THEN AS THEY BECOME AN

767
00:30:12,000 --> 00:30:14,280
ADULT AND SEE HOW THOSE THINGS

768
00:30:14,280 --> 00:30:16,440
DIFFER, IF THEY DO, IF THERE IS

769
00:30:16,440 --> 00:30:18,000
PARTICULAR EDUCATIONAL PROCESSES

770
00:30:18,000 --> 00:30:20,240
THAT THEY GO THROUGH THAT MAY

771
00:30:20,240 --> 00:30:21,680
HELP THEM COMPENSATE IN

772
00:30:21,680 --> 00:30:25,400
PARTICULAR AREAS OR WHATEVER

773
00:30:25,400 --> 00:30:28,320
THAT PROCESS IS, BECAUSE I'M

774
00:30:28,320 --> 00:30:31,640
SEEING ON A REGULAR BASIS WITH

775
00:30:31,640 --> 00:30:34,080
SITES AND THINGS I MONITOR

776
00:30:34,080 --> 00:30:36,280
ANYWHERE FROM FOUR TO FIVE

777
00:30:36,280 --> 00:30:38,160
ADULTS A DAY THAT ARE TALKING

778
00:30:38,160 --> 00:30:43,440
ABOUT RECENT DIAGNOSIS.

779
00:30:43,440 --> 00:30:44,440
WONDERING WHAT THEIR AUTISM MAY

780
00:30:44,440 --> 00:30:50,320
HAVE LOOKED LIKE AS A CHILD. HOW

781
00:30:50,320 --> 00:30:53,520
DO WE SAY THERE IS A DIAGNOSIS

782
00:30:53,520 --> 00:30:56,000
OF AUTISM, IS IT DIFFERENT IN

783
00:30:56,000 --> 00:30:59,960
ADULT THAN IT IS IN A CHILD? OR

784
00:30:59,960 --> 00:31:01,760
IS THERE PROGRESSION TO GET TO A

785
00:31:01,760 --> 00:31:04,120
PARTICULAR POINT? THERE IS A LOT

786
00:31:04,120 --> 00:31:05,480
OF SUBTLE QUESTIONS IN HERE

787
00:31:05,480 --> 00:31:08,680
ABOUT WHAT IT MEANS TO HAVE A

788
00:31:08,680 --> 00:31:10,360
DIAGNOSIS AS AN ADULT AND WHO

789
00:31:10,360 --> 00:31:14,120
DOES IT AND WHY DON'T WE HAVE

790
00:31:14,120 --> 00:31:16,240
MORE AVAILABILITY FOR THAT. WHAT

791
00:31:16,240 --> 00:31:19,880
IT MEANS ALSO IN CHILDREN AS

792
00:31:19,880 --> 00:31:22,360
THEY DO AGE AND WHAT AUTISM

793
00:31:22,360 --> 00:31:24,360
LOOKS LIKE. SO IT WOULD BE A

794
00:31:24,360 --> 00:31:27,440
DEEPER STUDY AND PROBABLY MANY,

795
00:31:27,440 --> 00:31:29,640
MANY INDIVIDUALS INVOLVED IN

796
00:31:29,640 --> 00:31:31,040
THAT. AND IF THERE COULD BE

797
00:31:31,040 --> 00:31:33,760
FUNDING FOR THAT TYPE OF THING.

798
00:31:33,760 --> 00:31:36,720
>> THANK YOU, JILLIAN,
THAT

799
00:31:36,720 --> 00:31:39,040
TOUCHES ON THINGS THAT ARE IN A

800
00:31:39,040 --> 00:31:40,960
FEW DIFFERENT CHAPTERS. STEWART

801
00:31:40,960 --> 00:31:44,960
MAY HAVE SOMETHING TO TOO. IN

802
00:31:44,960 --> 00:31:46,160
PREVALENT STUDIES I KNOW THEY

803
00:31:46,160 --> 00:31:47,680
HAVE A LITTLE BIT IN THERE.

804
00:31:47,680 --> 00:31:49,120
QUESTION TWO HAS SOME THINGS

805
00:31:49,120 --> 00:31:51,000
ABOUT LONGITUDINAL STUDIES,

806
00:31:51,000 --> 00:31:53,640
QUESTION ONE HAS WORK ON

807
00:31:53,640 --> 00:31:55,000
TRAJECTORIES AS WELL SO ALL

808
00:31:55,000 --> 00:31:56,320
THOSE WOULD LAY INTO THAT. THANK

809
00:31:56,320 --> 00:32:00,040
YOU FOR THAT COMMENT. I WILL

810
00:32:00,040 --> 00:32:01,680
MOVE OVER TO STEWART TO SEE IF

811
00:32:01,680 --> 00:32:02,600
YOU HAVE ANYTHING TO SAY IN

812
00:32:02,600 --> 00:32:03,760
RESPONSE AND ALSO WHATEVER ELSE

813
00:32:03,760 --> 00:32:07,280
YOU WANTED TO SHARE.

814
00:32:07,280 --> 00:32:11,680
>> THANK YOU, SUSA SUSAN.
MY COT

815
00:32:11,680 --> 00:32:12,840
IS TO KNOP ON HER COMMENTS

816
00:32:12,840 --> 00:32:15,520
BECAUSE THESE ARE IMPORTANT

817
00:32:15,520 --> 00:32:17,800
QUESTIONS TO KNOW MORE ABOUT THE

818
00:32:17,800 --> 00:32:20,560
TRAJECTORY OF INDIVIDUALS WITH

819
00:32:20,560 --> 00:32:25,360
AUTISM AND HOW THINGS CHANGE

820
00:32:25,360 --> 00:32:28,880
OVER TIME THE CDC IS CONDUCTING

821
00:32:28,880 --> 00:32:31,240
SUCH A LONGITUDINAL STUDY WHICH

822
00:32:31,240 --> 00:32:33,800
IS FOLLOW-UP STUDY FROM CDC

823
00:32:33,800 --> 00:32:36,120
STUDY TO EXPLORE EARLY

824
00:32:36,120 --> 00:32:38,000
DEVELOPMENT WHICH INITIALLY

825
00:32:38,000 --> 00:32:41,800
ENROLLED CHILDREN AT AGE 3 TO 5

826
00:32:41,800 --> 00:32:44,240
YEARS WITH AUTISM FOLLOWED UP IN

827
00:32:44,240 --> 00:32:46,240
EARLY TEENAGE YEARS AND WILL BE

828
00:32:46,240 --> 00:32:50,080
FOLLOWING UP AGAIN LATER ON.

829
00:32:50,080 --> 00:32:52,560
MANY QUESTIONS YOU ASK ARE BEING

830
00:32:52,560 --> 00:32:56,320
EVALUATED AS PART OF THIS STUDY.

831
00:32:56,320 --> 00:32:59,520
THOUGH IT IS A SINGLE STUDY, SO

832
00:32:59,520 --> 00:33:03,440
I AGREE MORE IS NEEDED IN THIS

833
00:33:03,440 --> 00:33:05,720
AREA BUT THE SEED FOLLOW-UP

834
00:33:05,720 --> 00:33:08,800
STUDIES AND THE SEED TEAM STUDY

835
00:33:08,800 --> 00:33:11,280
ARE SHEDDING LIGHT IN ORDER TO

836
00:33:11,280 --> 00:33:12,120
ANSWER THESE QUESTIONS YOU

837
00:33:12,120 --> 00:33:13,560
RAISE. THANK YOU SO MUCH FOR

838
00:33:13,560 --> 00:33:16,520
RAISING THOSE. 

839
00:33:16,520 --> 00:33:19,160
>> THANK YOU, STEWART. WE
WILL

840
00:33:19,160 --> 00:33:21,360
-- I KNOW WE DO HAVE A LITTLE

841
00:33:21,360 --> 00:33:24,280
MENTION OF SOME OF THAT IN

842
00:33:24,280 --> 00:33:25,600
QUESTION 7 BUT WE'LL MAKE SURE

843
00:33:25,600 --> 00:33:29,360
THAT WE COVER THAT AS WELL. SO

844
00:33:29,360 --> 00:33:30,920
NEXT SOUNDS LIKE THERE ARE NO

845
00:33:30,920 --> 00:33:32,360
NEW PEOPLE ASKING QUESTIONS SO

846
00:33:32,360 --> 00:33:35,000
GOING TO GO TO DINA.

847
00:33:35,000 --> 00:33:36,840
>> THANKS. I HAVE BEEN
DRAWING

848
00:33:36,840 --> 00:33:40,480
DOWN A COUPLE OF NOTES HERE. ONE

849
00:33:40,480 --> 00:33:45,680
THING FREQUENTLY MISSING TALKING

850
00:33:45,680 --> 00:33:47,120
SYSTEMS NAVIGATION, I

851
00:33:47,120 --> 00:33:50,760
APPRECIATED THE COMMENTS ABOUT

852
00:33:50,760 --> 00:33:55,920
PACING TO THE PARENTS' CAPACITY.

853
00:33:55,920 --> 00:33:58,520
WE ARE OFTEN NOT INFORMING THOSE

854
00:33:58,520 --> 00:34:00,760
PROVIDERS THAT ARE DELIVERING

855
00:34:00,760 --> 00:34:02,440
THAT DIAGNOSIS, THE REALITY OF

856
00:34:02,440 --> 00:34:06,200
THE HIGH RATE OF PARENTAL

857
00:34:06,200 --> 00:34:08,320
DISABILITY WITHIN THIS

858
00:34:08,320 --> 00:34:10,000
POPULATION. IT MAYBE AUTISM THAT

859
00:34:10,000 --> 00:34:12,360
WAS NEVER IDENTIFIED, THEY MAY

860
00:34:12,360 --> 00:34:13,560
HAVE EXECUTIVE FUNCTION OR

861
00:34:13,560 --> 00:34:17,360
PROCESSING ISSUES RELATED TO

862
00:34:17,360 --> 00:34:20,680
ADHD, THEY MAY HAVE ANXIETY

863
00:34:20,680 --> 00:34:24,960
DISORDER, THERE COULD BE A

864
00:34:24,960 --> 00:34:25,800
BILLION OTHER THINGS HAPPENING

865
00:34:25,800 --> 00:34:28,760
IN THE BROADER PHENOTYPE OF

866
00:34:28,760 --> 00:34:29,600
THESE PARENT THAT MAKE

867
00:34:29,600 --> 00:34:31,040
DELIVERING THE INTERVENTION AND

868
00:34:31,040 --> 00:34:33,520
SYSTEMS NAVIGATION INFORMATION

869
00:34:33,520 --> 00:34:35,080
TOO OVERWHELMING AT THAT TIME.

870
00:34:35,080 --> 00:34:38,080
SO I THINK WHAT WE WOULD RATHER

871
00:34:38,080 --> 00:34:40,200
SUGGEST IS THAT THAT DIAGNOSTIC

872
00:34:40,200 --> 00:34:43,240
PROCESS NEEDS TO BE A

873
00:34:43,240 --> 00:34:45,160
MULTI-SERIES PROCESS TO HELP

874
00:34:45,160 --> 00:34:48,400
PARENTS ABSORB THAT INFORMATION

875
00:34:48,400 --> 00:34:50,160
OVER TIME RATHER THAN HANDING

876
00:34:50,160 --> 00:34:52,560
THEM A PACT AND SENDING THEM OUT

877
00:34:52,560 --> 00:34:53,800
THE DOOR WHICH FREQUENTLY

878
00:34:53,800 --> 00:34:56,560
HAPPENS. WE NEED TO TALK ABOUT

879
00:34:56,560 --> 00:34:58,400
WAIT LISTS.  WE HAVE

880
00:34:58,400 --> 00:34:59,760
OUTRAGEOUSLY DELAYED WAIT LISTS

881
00:34:59,760 --> 00:35:02,640
PARTICULARLY IN REGARD TO ADULT

882
00:35:02,640 --> 00:35:06,600
DIAGNOSIS. WE NEED TO ENCOURAGE

883
00:35:06,600 --> 00:35:09,080
THE DELIVERY IN THAT INFORMATION

884
00:35:09,080 --> 00:35:11,480
THAT IT NEEDS TO INCLUDE

885
00:35:11,480 --> 00:35:13,920
MULTIPLE INTERVENTION TOOLS AND

886
00:35:13,920 --> 00:35:17,040
NOT JUST ABA, THERE IS SENSORY

887
00:35:17,040 --> 00:35:18,360
PROCESSING SUPPORT, SPEECH

888
00:35:18,360 --> 00:35:21,360
LANGUAGE SUPPORT SERVICES PEOPLE

889
00:35:21,360 --> 00:35:23,520
JUST GO TO ABA WITHOUT A LOT OF

890
00:35:23,520 --> 00:35:25,680
INFORMATION ASSUMING IT IS THE

891
00:35:25,680 --> 00:35:30,120
BEST STEP. FOR MANY PEOPLE IT IS

892
00:35:30,120 --> 00:35:33,440
NOT. I TOTALLY NEED -- THINK

893
00:35:33,440 --> 00:35:35,440
THAT WE NEED FOR ANYBODY WHO

894
00:35:35,440 --> 00:35:38,600
WRITES A REPORT RELATED TO

895
00:35:38,600 --> 00:35:40,600
SOMEONE ON THE AUTISM SPECTRUM

896
00:35:40,600 --> 00:35:42,320
NEEDS TO LEARN HOW TO WRITE TO

897
00:35:42,320 --> 00:35:44,320
THE AUDIENCE THAT IT IS BEING

898
00:35:44,320 --> 00:35:47,320
DELIVERED TO. FOR EXAMPLE, WHEN

899
00:35:47,320 --> 00:35:49,840
YOU WRITE A DIAGNOSTIC REPORT

900
00:35:49,840 --> 00:35:51,280
FOR SCHOOL SYSTEM YOU PROBABLY

901
00:35:51,280 --> 00:35:54,200
HAVE TO PROMOTE STRENGTH TO GET

902
00:35:54,200 --> 00:35:56,240
THE SCHOOL TO BUY INTO INVESTING

903
00:35:56,240 --> 00:35:58,520
IN RESOURCES INTO THAT STUDENT.

904
00:35:58,520 --> 00:36:00,240
HOWEVER IF YOU WRITE THE SAME

905
00:36:00,240 --> 00:36:04,120
REPORT IN AUDIENCE SOCIAL

906
00:36:04,120 --> 00:36:04,880
SECURITY, STRENGTH IS NOT WHAT

907
00:36:04,880 --> 00:36:06,800
YOU WANT TO LEAD WITH. OBVIOUSLY

908
00:36:06,800 --> 00:36:07,920
YOU DON'T MISREPRESENT ANYTHING

909
00:36:07,920 --> 00:36:11,800
BUT FOCUS ON DEFICITS FOR SOCIAL

910
00:36:11,800 --> 00:36:13,720
SECURITY. WITH VOC REHAB YOU

911
00:36:13,720 --> 00:36:15,360
HAVE TO WALK A LINE BETWEEN

912
00:36:15,360 --> 00:36:18,520
DEFICITS AND CAPACITIES. I DON'T

913
00:36:18,520 --> 00:36:19,560
THINK THAT DIEING MOST

914
00:36:19,560 --> 00:36:20,360
SIGNATURES ARE BEING TAUGHT HOW

915
00:36:20,360 --> 00:36:24,040
TO ADAPT THEIR REPORTS TO

916
00:36:24,040 --> 00:36:26,040
CONSIDER NOT ONLY WHO IS GOING

917
00:36:26,040 --> 00:36:27,840
TO BE USING THE INFORMATION BUT

918
00:36:27,840 --> 00:36:30,880
HOW IT IS UTILIZED. I DON'T KNOW

919
00:36:30,880 --> 00:36:33,280
IF IT IS HERE OR SOMEWHERE ELSE

920
00:36:33,280 --> 00:36:37,400
BUT SOMEBODY WORKING WITH A

921
00:36:37,400 --> 00:36:39,120
SPECIFIC GOVERNMENT SYSTEM I

922
00:36:39,120 --> 00:36:41,720
FIND IT PURR PORTS TO BE NEARLY

923
00:36:41,720 --> 00:36:43,160
UNUSABLE IN THE STANDARDIZED

924
00:36:43,160 --> 00:36:44,560
TEMPLATE PSYCHOLOGISTS ARE

925
00:36:44,560 --> 00:36:45,680
TRAINED ON FOR EXAMPLE. THANK

926
00:36:45,680 --> 00:36:47,200
YOU.

927
00:36:47,200 --> 00:36:49,280
>> THANK YOU, THANK YOU
FOR

928
00:36:49,280 --> 00:36:51,000
THOSE HELPFUL COMMENTS. IT FITS

929
00:36:51,000 --> 00:36:52,480
IN HERE AND PROBABLY SOME OTHER

930
00:36:52,480 --> 00:36:53,960
PLACES AS WELL. SO WE APPRECIATE

931
00:36:53,960 --> 00:36:57,640
THAT. NEXT I WILL GO BACK TO

932
00:36:57,640 --> 00:37:00,480
STEVEN, SOUNDS LIKE YOU MAY HAVE

933
00:37:00,480 --> 00:37:03,720
COMMENTS FROM SOMEONE WHO WROTE

934
00:37:03,720 --> 00:37:04,000
IN.

935
00:37:04,000 --> 00:37:08,840
>> I HAVE A COMMENT FROM
DR.

936
00:37:08,840 --> 00:37:10,720
STAR ROBERTSON. I WANT TO

937
00:37:10,720 --> 00:37:12,640
CLARIFY REGARDING ADOS THAT IT

938
00:37:12,640 --> 00:37:15,320
HAS MAJOR LIMITATIONS AND

939
00:37:15,320 --> 00:37:17,040
SOMETIMES MISSES AUTISTIC PEOPLE

940
00:37:17,040 --> 00:37:19,800
BECAUSE OF BIASES ABOUT AUTISM

941
00:37:19,800 --> 00:37:21,480
AND LIVED EXPERIENCE. IT HAS

942
00:37:21,480 --> 00:37:24,240
MORE LIMITATIONS FOR DIAGNOSING

943
00:37:24,240 --> 00:37:26,400
ADULTS AND OLDER ADOLESCENTS BUT

944
00:37:26,400 --> 00:37:27,560
SOMETIMES AUTISTIC CHILDREN ARE

945
00:37:27,560 --> 00:37:29,880
MISSED BY ADOS TOO. THAT IS MY

946
00:37:29,880 --> 00:37:32,120
MAIN CONCERN REGARDING REFERRING

947
00:37:32,120 --> 00:37:34,960
TO ADOS OR ANY OTHER SCREENING

948
00:37:34,960 --> 00:37:36,840
INSTRUMENTS AS THE GOLD

949
00:37:36,840 --> 00:37:38,200
STANDARD, ONE SHOULD RECOGNIZE

950
00:37:38,200 --> 00:37:40,520
INHERENT LIMITATIONS AND

951
00:37:40,520 --> 00:37:42,760
CULTURAL AND GENDER BIASES, AND

952
00:37:42,760 --> 00:37:45,400
OTHER BIAS FOR ADAPTATIONS AMONG

953
00:37:45,400 --> 00:37:48,160
AUTISTIC PEOPLE THAT MAY HINDER

954
00:37:48,160 --> 00:37:49,840
RECOGNIZING SAME CHARACTERISTICS

955
00:37:49,840 --> 00:37:51,960
OF AUTISM, ADOS AND OTHER

956
00:37:51,960 --> 00:37:54,560
SCREENING INSTRUMENTS, ARE ALSO

957
00:37:54,560 --> 00:37:56,200
SUBJECTIVE IN NATURE IN A SENSE

958
00:37:56,200 --> 00:37:58,640
OF CLINICIANS INTERPRETATIONS OF

959
00:37:58,640 --> 00:37:59,600
HUMAN BEHAVIOR AND

960
00:37:59,600 --> 00:38:02,760
COMMUNICATION.

961
00:38:02,760 --> 00:38:04,840
>> THANK YOU, SCOTT FOR
THOSE

962
00:38:04,840 --> 00:38:08,080
COMMENTS. WE WILL TAKE NOTE OF

963
00:38:08,080 --> 00:38:10,240
THAT. JENNIFER JOHNSON,

964
00:38:10,240 --> 00:38:13,480
ADDITIONAL COMMENTS?

965
00:38:13,480 --> 00:38:15,280
>> ANOTHER POPULATION THAT
WE

966
00:38:15,280 --> 00:38:17,480
MIGHT WANT TO THINK ABOUT BEING

967
00:38:17,480 --> 00:38:18,920
INCORPORATED IN TO THE STRATEGIC

968
00:38:18,920 --> 00:38:22,480
PLAN, NOT SURE IF IT IS ALREADY

969
00:38:22,480 --> 00:38:24,560
IN THERE. ALSO SCREENING AND

970
00:38:24,560 --> 00:38:26,880
DIAGNOSIS FOR PEOPLE

971
00:38:26,880 --> 00:38:28,680
INCARCERATED. BECAUSE THERE IS A

972
00:38:28,680 --> 00:38:30,120
LOT OF CROSS OVER THERE AS WELL

973
00:38:30,120 --> 00:38:33,320
AND A LOT OF PEOPLE WHO ARE NOT

974
00:38:33,320 --> 00:38:36,000
DIAGNOSED OR MAYBE DIAGNOSED BUT

975
00:38:36,000 --> 00:38:39,080
MISDIAGNOSED SO JUST

976
00:38:39,080 --> 00:38:40,200
INCORPORATING ANYBODY

977
00:38:40,200 --> 00:38:44,080
INCARCERATED INTO THE POPULATION

978
00:38:44,080 --> 00:38:45,480
OF THAT ARE COVERED UNDER THIS

979
00:38:45,480 --> 00:38:45,760
QUESTION.

980
00:38:45,760 --> 00:38:47,680
>> THANK YOU. I DON'T
THINK THAT

981
00:38:47,680 --> 00:38:49,400
WE HAVE ANYONE FROM DOJ ON THE

982
00:38:49,400 --> 00:38:52,080
CALL TODAY BUT WE CAN CHECK IN

983
00:38:52,080 --> 00:38:54,120
WITH THEM AND SEE IF THEY HAVE

984
00:38:54,120 --> 00:38:56,600
COMMENTS ON THAT AS WELL TO HELP

985
00:38:56,600 --> 00:38:58,160
US WITH THAT. THAT ISN'T A

986
00:38:58,160 --> 00:38:59,160
POPULATION THAT WE HAVE EVER

987
00:38:59,160 --> 00:39:02,400
TALKED ABOUT IN THE PLAN BEFORE 

988
00:39:02,400 --> 00:39:06,160
>> OKAY. DO WE HAVE MORE

989
00:39:06,160 --> 00:39:07,600
COMMENTS ABOUT SCREENING AND

990
00:39:07,600 --> 00:39:09,480
DIAGNOSIS RELATED ISSUES? ANYONE

991
00:39:09,480 --> 00:39:12,720
ELSE HAVE ANYTHING THEY WANT TO

992
00:39:12,720 --> 00:39:12,920
SHARE?

993
00:39:12,920 --> 00:39:15,480
>> SECOND GENERATION
FAMILIES.

994
00:39:15,480 --> 00:39:18,680
THERE IS A LOT OF GRAND PARENTS

995
00:39:18,680 --> 00:39:19,360
RAISING CHILDREN IN THIS

996
00:39:19,360 --> 00:39:19,680
POPULATION.

997
00:39:19,680 --> 00:39:22,640
>> WHAT ABOUT THAT?

998
00:39:22,640 --> 00:39:25,080
>> I JUST THINK SUPPORTS
AND

999
00:39:25,080 --> 00:39:28,480
SERVICES ARE GOING TO HAVE TO BE

1000
00:39:28,480 --> 00:39:32,200
INCREASED. FOR THESE SECOND

1001
00:39:32,200 --> 00:39:33,800
GENERATION PARENTS THAT ARE IN

1002
00:39:33,800 --> 00:39:35,680
THEIR 60s AND 70s RAISING

1003
00:39:35,680 --> 00:39:37,120
TODDLERS.  THEY WILL NEED

1004
00:39:37,120 --> 00:39:38,480
ADDITIONAL HELP THAT WE DON'T

1005
00:39:38,480 --> 00:39:42,000
TALK ABOUT VERY OFTEN.

1006
00:39:42,000 --> 00:39:45,880
>> THAT MAY FIT A LITTLE
MORE

1007
00:39:45,880 --> 00:39:47,160
QUESTION 5, WE CAN TAKE NOTE OF

1008
00:39:47,160 --> 00:39:50,680
THAT. I THINK THAT IN THE

1009
00:39:50,680 --> 00:39:51,840
CAREGIVERS COMMITTEE THEY HAVE

1010
00:39:51,840 --> 00:39:52,680
BEEN TALKING ABOUT THAT ISSUE AS

1011
00:39:52,680 --> 00:39:57,320
WELL. SO THAT IS HELPFUL. DOES

1012
00:39:57,320 --> 00:39:58,440
ANYONE ON THE COMMITTEE HAVE

1013
00:39:58,440 --> 00:40:01,000
COMMENTS ABOUT NEW TECHNOLOGIES

1014
00:40:01,000 --> 00:40:03,000
IN SCREENING AND DIAGNOSIS AND

1015
00:40:03,000 --> 00:40:03,880
THE DIRECTION THAT THAT IS

1016
00:40:03,880 --> 00:40:05,360
MOVING IN AND WHAT WE MIGHT WANT

1017
00:40:05,360 --> 00:40:06,920
TO TALK ABOUT IN THE PLAN WITH

1018
00:40:06,920 --> 00:40:13,800
REGARD TO THAT? ALICIA, YOU HAVE

1019
00:40:13,800 --> 00:40:14,240
A COMMENT.

1020
00:40:14,240 --> 00:40:17,320
>> I HAVE A COMMENT ABOUT

1021
00:40:17,320 --> 00:40:22,200
RESEARCH TOOLS AND TECHNOLOGIES,

1022
00:40:22,200 --> 00:40:24,680
MY FIRST COMMENT IS I WANT TO

1023
00:40:24,680 --> 00:40:26,080
REITERATE EVERYTHING PAUL SAID,

1024
00:40:26,080 --> 00:40:29,160
I HAD MY HAND RAISED AND LOWERED

1025
00:40:29,160 --> 00:40:30,200
BECAUSE HE SAID EVERYTHING I WAS

1026
00:40:30,200 --> 00:40:32,080
THINKING IN TERMS OF MAKING SURH

1027
00:40:32,080 --> 00:40:34,320
E WELL TRAINED

1028
00:40:34,320 --> 00:40:38,920
CLINICIANS AND A WORK FORCE. TO

1029
00:40:38,920 --> 00:40:41,080
THINK ABOUT ISSUES AND WHY THESE

1030
00:40:41,080 --> 00:40:43,040
DOCTORS ONLY HAVE A CERTAIN

1031
00:40:43,040 --> 00:40:44,720
AMOUNT OF TIME AND ONLY

1032
00:40:44,720 --> 00:40:46,400
REIMBURSED FOR A CERTAIN AMOUNT

1033
00:40:46,400 --> 00:40:48,320
OF TIME TO SEE SOMETIMES COMPLEX

1034
00:40:48,320 --> 00:40:50,200
CASES. BUT I DID WANT TO MAKE A

1035
00:40:50,200 --> 00:40:51,320
COMMENT ABOUT THE SCREENING

1036
00:40:51,320 --> 00:40:55,400
ANDND DIAGNOSIS RESEARCH TOOLS

1037
00:40:55,400 --> 00:40:57,200
AND TECHNOLOGIES, I'M SEEING THE

1038
00:40:57,200 --> 00:40:58,440
LAST FEW YEARS, MAYBE I HAVE

1039
00:40:58,440 --> 00:41:00,720
BEEN LIVING UNDER A ROCK BUT THE

1040
00:41:00,720 --> 00:41:01,720
LAST FEW YEARS I HAVE BEEN

1041
00:41:01,720 --> 00:41:04,840
SEEING A LOT MORE COME THROUGH

1042
00:41:04,840 --> 00:41:09,280
IN TERMS OF IDEAS, PAPERS, NEW

1043
00:41:09,280 --> 00:41:11,400
COMPANIES THAT STARTED UP,

1044
00:41:11,400 --> 00:41:13,200
PLACES THAT ARE TAKING THEIR

1045
00:41:13,200 --> 00:41:18,040
INITIAL PILOT TO MARKET. I THINK

1046
00:41:18,040 --> 00:41:19,320
WE PROBABLY NEED I DON'T KNOW IF

1047
00:41:19,320 --> 00:41:22,200
THIS IS IACC THING BUT WE NEED

1048
00:41:22,200 --> 00:41:24,200
TO HAVE COORDINATION AMONG THEM,

1049
00:41:24,200 --> 00:41:26,440
A LOT OF THEM ARE NOT VERY

1050
00:41:26,440 --> 00:41:29,000
SPECIFIC BUT THAT IS NOT ALWAYS

1051
00:41:29,000 --> 00:41:31,120
A BAD THING, THEY MAY NOT BE

1052
00:41:31,120 --> 00:41:33,120
SPECIFIC TO AUTISM BUT MAY PICK

1053
00:41:33,120 --> 00:41:34,280
UP OTHER THINGS BUT THERE IS A

1054
00:41:34,280 --> 00:41:35,520
PROPOSAL THEY BE USED IN ALL

1055
00:41:35,520 --> 00:41:37,120
SORTS OF DIFFERENT ENVIRONMENTS

1056
00:41:37,120 --> 00:41:38,920
WHICH COULD REALLY RISK THEIR

1057
00:41:38,920 --> 00:41:43,440
ACCURACY AS WELL. THIS COULD

1058
00:41:43,440 --> 00:41:46,360
INCLUDE EVERYTHING FROM THESE

1059
00:41:46,360 --> 00:41:48,760
TOOLS, CAMERAS FOR EYE TRACKING,

1060
00:41:48,760 --> 00:41:50,400
PEOPLE ARE CONSIDERING NEW

1061
00:41:50,400 --> 00:41:53,760
GENETIC TESTS, OTHER BIOMARKERS,

1062
00:41:53,760 --> 00:41:55,440
BIOMARKERS NOT JUST FOR

1063
00:41:55,440 --> 00:41:58,560
DIAGNOSIS BUT FOR TREATMENT

1064
00:41:58,560 --> 00:42:01,440
INTERVENTION TRIALS, AND I THINK

1065
00:42:01,440 --> 00:42:03,400
THAT MY MAJOR TAKE AWAY IS THAT

1066
00:42:03,400 --> 00:42:04,720
IT WOULD BE GREAT IF WE COULD

1067
00:42:04,720 --> 00:42:06,600
INTEGRATE THEM ALL TOGETHER BY

1068
00:42:06,600 --> 00:42:09,360
THE MAGIC NUMBER WHICH I KNOW OR

1069
00:42:09,360 --> 00:42:10,800
MAGIC COMBINATION WHICH IS A

1070
00:42:10,800 --> 00:42:12,800
HARD THING TO DO. MAYBE THAT IS

1071
00:42:12,800 --> 00:42:14,720
WHAT WE NEED TO STRIVE FOR

1072
00:42:14,720 --> 00:42:16,160
INSTEAD OF SAYING THIS IS THE

1073
00:42:16,160 --> 00:42:18,120
ONE THAT EVERYONE SHOULD HAVE.

1074
00:42:18,120 --> 00:42:21,760
OR WHERE WE SHOULD BE OPEN TO A

1075
00:42:21,760 --> 00:42:23,720
MIX OF DIFFERENT THINGS.

1076
00:42:23,720 --> 00:42:25,920
>> THANK YOU FOR THAT. DO
WE

1077
00:42:25,920 --> 00:42:28,680
HAVE ANY SENSE OF WHAT THE IACC

1078
00:42:28,680 --> 00:42:30,360
MIGHT WANT TO RECOMMEND IN TERMS

1079
00:42:30,360 --> 00:42:33,000
OF TRYING TO CUT DOWN ON WAITING

1080
00:42:33,000 --> 00:42:34,880
LIST? I KNOW THAT ISSUE IS

1081
00:42:34,880 --> 00:42:36,040
MENTIONED BUT IS THERE ANYTHING

1082
00:42:36,040 --> 00:42:37,560
THAT WE MIGHT WANT TO BRING OUT

1083
00:42:37,560 --> 00:42:42,080
IN THE STRATEGIC PLAN AS AS WAYS

1084
00:42:42,080 --> 00:42:43,520
THAT WE CAN ASSIST WITH GETTING

1085
00:42:43,520 --> 00:42:48,960
THESE WAITING LISTS CUT DOWN.

1086
00:42:48,960 --> 00:42:51,400
>> I WILL ADD TO THAT, WE

1087
00:42:51,400 --> 00:42:52,960
REALLY, REALLY, REALLY NEED TO

1088
00:42:52,960 --> 00:42:57,680
BOOST THE WORK FORCE HERE. IT IS

1089
00:42:57,680 --> 00:42:59,720
THE NUMBER OF -- I THINK IT IS

1090
00:42:59,720 --> 00:43:01,160
COMBINATION OF NUMBER OF

1091
00:43:01,160 --> 00:43:02,840
PROVIDERS AND THE TIME AND

1092
00:43:02,840 --> 00:43:04,600
TRAINING THEY GET. BUT THEY ARE

1093
00:43:04,600 --> 00:43:07,360
EXPECTED TO DO SO MUCH THAT I

1094
00:43:07,360 --> 00:43:09,760
THINK THAT WE NEED TO THINK

1095
00:43:09,760 --> 00:43:12,800
ABOUT WAYS TO BETTER TRAIN

1096
00:43:12,800 --> 00:43:14,000
INDIVIDUALS WHO MAKE THAT

1097
00:43:14,000 --> 00:43:15,920
DIAGNOSTIC EVALUATION. ALSO IN

1098
00:43:15,920 --> 00:43:18,360
TERMS OF WAITING LISTS THERE ARE

1099
00:43:18,360 --> 00:43:21,920
SYSTEMS THAT ALLOW INDIVIDUALS

1100
00:43:21,920 --> 00:43:23,480
TO RECEIVE EARLY INTERVENTION

1101
00:43:23,480 --> 00:43:25,360
BEFORE DIAGNOSIS MADE SO THE

1102
00:43:25,360 --> 00:43:28,360
DIAGNOSIS DOES A LOT BUT KIND OF

1103
00:43:28,360 --> 00:43:29,800
THOSE EARLY AGES IT CAN EVEN IF

1104
00:43:29,800 --> 00:43:32,800
THERE IS A CONCERN OR WE THINK

1105
00:43:32,800 --> 00:43:34,560
MORE BROADLY ACROSS WHETHER OR

1106
00:43:34,560 --> 00:43:36,440
NOT IT IS AUTISM OR SOMETHING

1107
00:43:36,440 --> 00:43:37,920
ELSE BECAUSE IF IT IS JUST

1108
00:43:37,920 --> 00:43:41,080
AUTISM THAT IS GETTING KIDS INTO

1109
00:43:41,080 --> 00:43:42,400
INTERVENTION OR AUTISM GETTING

1110
00:43:42,400 --> 00:43:44,080
MENTAL HEALTH SERVICES, THEN

1111
00:43:44,080 --> 00:43:44,920
THAT IS SOMETHING THAT NEEDS TO

1112
00:43:44,920 --> 00:43:46,680
CHANGE.

1113
00:43:46,680 --> 00:43:48,960
>> THAT IS NOT IN ANY WAY
TRUE

1114
00:43:48,960 --> 00:43:50,200
FOR ADULTS JUST TO REINFORCE

1115
00:43:50,200 --> 00:43:52,520
THAT, I KNOW YOU KNOW THAT

1116
00:43:52,520 --> 00:43:54,160
ALICIA BUT I WANTED TO -- YOU

1117
00:43:54,160 --> 00:43:55,880
CAN'T GET ANYTHING WITHOUT THE

1118
00:43:55,880 --> 00:43:57,680
LABEL FIRST. AND ADULT SERVICES

1119
00:43:57,680 --> 00:44:00,920
FOR THE MOST PART. THANKS.

1120
00:44:00,920 --> 00:44:04,720
>> THANK YOU. I WILL GO TO

1121
00:44:04,720 --> 00:44:07,720
MYCHEL BURGER.  FROM SAMHSA.

1122
00:44:07,720 --> 00:44:10,280
>> YES. GOOD AFTERNOON. I
JUST

1123
00:44:10,280 --> 00:44:12,960
WANT TO MENTION AMONG THE

1124
00:44:12,960 --> 00:44:14,480
VARIOUS CO-MORBIDITIES SUBSTANCE

1125
00:44:14,480 --> 00:44:17,240
USE DISORDERS SOMETHING

1126
00:44:17,240 --> 00:44:19,360
PROVIDERS SHOULD (INAUDIBLE)

1127
00:44:19,360 --> 00:44:21,920
AUTISTIC PATIENTS AND THOSE IN

1128
00:44:21,920 --> 00:44:24,720
SUBSTANCE USE DISORDER

1129
00:44:24,720 --> 00:44:26,240
FACILITIES, I BELIEVE I SENT

1130
00:44:26,240 --> 00:44:26,920
SOME REFERENCES ON THAT.

1131
00:44:26,920 --> 00:44:29,640
>> IT IS HARD TO HEAR. DID

1132
00:44:29,640 --> 00:44:30,920
SOMEBODY ELSE CATCH -- CAN YOU

1133
00:44:30,920 --> 00:44:32,920
SAY IT AGAIN? I'M SORRY.

1134
00:44:32,920 --> 00:44:35,200
>> YES. I WAS GOING TO SAY

1135
00:44:35,200 --> 00:44:36,920
SUBSTANCE USE DISORDERS IS

1136
00:44:36,920 --> 00:44:37,920
SOMETHING THAT SHOULD BE

1137
00:44:37,920 --> 00:44:41,560
SCREENED FOR BOTH BY PROVIDERS

1138
00:44:41,560 --> 00:44:43,360
OF CURE TO AUTISTIC PERSONS AND

1139
00:44:43,360 --> 00:44:45,080
THOSE SUBSTANCE USE FACILITIES. 

1140
00:44:45,080 --> 00:44:47,040
I WOULD NOTE IT IS A

1141
00:44:47,040 --> 00:44:48,320
CO-MORBIDITY AND I BELIEVE I

1142
00:44:48,320 --> 00:44:49,080
SENTENCE YOU COUPLE OF

1143
00:44:49,080 --> 00:44:49,520
REFERENCES ON THAT.

1144
00:44:49,520 --> 00:44:52,720
>> GOT IT. THANK YOU.
APPRECIATE

1145
00:44:52,720 --> 00:44:55,760
THAT. MATTHEW.

1146
00:44:55,760 --> 00:44:59,920
>> HI, SUSAN THANKS. SO
JUST

1147
00:44:59,920 --> 00:45:00,920
FOLLOWING ON THE PRIOR COMMENT,

1148
00:45:00,920 --> 00:45:05,080
WE COULD MAKE A STATEMENT IN

1149
00:45:05,080 --> 00:45:06,880
UNDER QUESTION ONE ON THE NEED

1150
00:45:06,880 --> 00:45:11,320
TO FOSTER MORE RESEARCH ON USING

1151
00:45:11,320 --> 00:45:17,120
TOOLS AN TECHNOLOGIES TO EXPAND

1152
00:45:17,120 --> 00:45:19,040
DIAGNOSTIC CAPABILITY AND

1153
00:45:19,040 --> 00:45:21,560
MEASURE THE EFFICACY AND

1154
00:45:21,560 --> 00:45:23,440
EFFECTIVENESS OF THAT. OF COURSE

1155
00:45:23,440 --> 00:45:25,200
THAT RELATES TO THE COMMENTS

1156
00:45:25,200 --> 00:45:28,160
PEOPLE MADE ABOUT THAT DIRECTLY

1157
00:45:28,160 --> 00:45:30,520
RELATES TO WAIT LIST, TRAINING

1158
00:45:30,520 --> 00:45:33,800
AND COMMUNICATION AROUND

1159
00:45:33,800 --> 00:45:34,840
DIAGNOSIS THANK YOU.

1160
00:45:34,840 --> 00:45:37,600
>> GREAT.

1161
00:45:37,600 --> 00:45:42,080
>> GREAT. THANK YOU. I SAW
YOUR

1162
00:45:42,080 --> 00:45:46,400
HAND RAISED FOR A MOMENT, DID

1163
00:45:46,400 --> 00:45:49,160
YOU WANT TO USE YOUR AAC OR DID

1164
00:45:49,160 --> 00:45:53,560
YOU WANT TO SEND SOMETHING TO

1165
00:45:53,560 --> 00:45:57,000
STEVEN? STEVEN DO YOU HAVE

1166
00:45:57,000 --> 00:45:58,360
SOMETHING FROM HARRY?

1167
00:45:58,360 --> 00:46:00,560
>> HE DID SEND ME A FEW

1168
00:46:00,560 --> 00:46:01,960
COMMENTS. HE SAID THERE IS A

1169
00:46:01,960 --> 00:46:04,520
NEED TO TRAIN PEOPLE DOWNSTREAM

1170
00:46:04,520 --> 00:46:07,680
WITH LOWER QUALIFICATIONS. AND

1171
00:46:07,680 --> 00:46:08,920
REQUIREMENTS TO DO SOME OF THE

1172
00:46:08,920 --> 00:46:11,880
MORE ROUTINE TESTS. THIS WILL

1173
00:46:11,880 --> 00:46:16,040
TAKE THE BURDEN OFF FULLY

1174
00:46:16,040 --> 00:46:18,080
QUALIFIED PERSONNEL. BUT THE

1175
00:46:18,080 --> 00:46:21,480
COST TO FAMILY SHOULDN'T BE

1176
00:46:21,480 --> 00:46:23,880
INCREASED JUST ASK DELEGATION TO

1177
00:46:23,880 --> 00:46:24,840
INCREASE THE WAIT LIST.

1178
00:46:24,840 --> 00:46:29,440
>> HUE F THANK YOU FOR
THAT COM.

1179
00:46:29,440 --> 00:46:31,520
SCOTT, DO YOU HAVE ANOTHER

1180
00:46:31,520 --> 00:46:31,840
COMMENT IN

1181
00:46:31,840 --> 00:46:34,960
>> , SUSAN, I CONCUR ON
THE WORK

1182
00:46:34,960 --> 00:46:36,520
FORCE DEVELOPMENT SUPPORTING

1183
00:46:36,520 --> 00:46:38,840
BETTER WORK FORCE DEVELOPMENT

1184
00:46:38,840 --> 00:46:40,720
AND WORK PROVIDERS OUT THERE

1185
00:46:40,720 --> 00:46:42,440
INCLUDING SUPPORT DIAGNOSIS

1186
00:46:42,440 --> 00:46:43,960
ACROSS THE LIFE SPAN, THAT FITS

1187
00:46:43,960 --> 00:46:45,640
INTO SOME OF OUR FOCUS HERE WITH

1188
00:46:45,640 --> 00:46:49,640
DEPARTMENT OF LABOR IS THAT WE

1189
00:46:49,640 --> 00:46:52,560
ARE BIG BELIEVERS ON HAVING

1190
00:46:52,560 --> 00:46:53,840
ENHANCEMENTS TO TALENT WORK

1191
00:46:53,840 --> 00:46:55,600
FORCE DEVELOPMENT ON THAT SPACE

1192
00:46:55,600 --> 00:46:56,680
AND I THINK TECHNOLOGY WILL

1193
00:46:56,680 --> 00:46:59,000
HELP. I THINK THERE ARE -- FOLKS

1194
00:46:59,000 --> 00:47:00,600
SHOULD BE CAREFUL AND THIS IS

1195
00:47:00,600 --> 00:47:01,840
WHERE IT CAN HELP WITH

1196
00:47:01,840 --> 00:47:02,960
PARTNERING WITH AUTISTIC PEOPLE

1197
00:47:02,960 --> 00:47:06,520
AND FAMILIES TO -- WITH

1198
00:47:06,520 --> 00:47:09,040
TECHNOLOGY, NEW TOOLS TO ADDRESS

1199
00:47:09,040 --> 00:47:11,720
BIASES AND MAKE SURE FOLKS

1200
00:47:11,720 --> 00:47:13,280
ADDRESS ISSUES THAT MAY COME UP

1201
00:47:13,280 --> 00:47:17,560
IN TERMS OF HOW THOSE TOOLS LOOK

1202
00:47:17,560 --> 00:47:19,680
FOR AND EXAMINE AND CONSIDER

1203
00:47:19,680 --> 00:47:20,560
TRAITS AFTER AUTISM

1204
00:47:20,560 --> 00:47:23,840
CHARACTERISTICS. I'M THINKING

1205
00:47:23,840 --> 00:47:25,840
PARTIALLY FOR INSTANCE USE OF

1206
00:47:25,840 --> 00:47:27,400
ARTIFICIAL INTELLIGENCE, MACHINE

1207
00:47:27,400 --> 00:47:28,800
LEARNING SOME NEWER EMERGING

1208
00:47:28,800 --> 00:47:30,920
TECH THAT IS COMING UP, WE FOCUS

1209
00:47:30,920 --> 00:47:32,680
ON THAT AT THE OFFICE OF

1210
00:47:32,680 --> 00:47:33,920
DISABILITY EMPLOYMENT POLICY

1211
00:47:33,920 --> 00:47:35,360
BECAUSE OF THE IMPACT ON PEOPLE

1212
00:47:35,360 --> 00:47:38,880
WITH DISABILITIES. THOSE

1213
00:47:38,880 --> 00:47:41,000
TECHNOLOGIES BY THEIR NATURE

1214
00:47:41,000 --> 00:47:42,520
HAVE HAD MANY LIMITATIONS IN THE

1215
00:47:42,520 --> 00:47:44,080
LAST FIVE OR TEN YEARS AND HAVE

1216
00:47:44,080 --> 00:47:48,320
HAD ISSUES ALREADY WITH HOW THEY

1217
00:47:48,320 --> 00:47:49,800
CONSIDER DISABILITY IN THE LIVED

1218
00:47:49,800 --> 00:47:51,600
EXPERIENCE. SO I THINK IT IS

1219
00:47:51,600 --> 00:47:52,960
SOMETHING THAT CAN BE HELPFUL,

1220
00:47:52,960 --> 00:47:54,600
TECHNOLOGY IS GOING TO BE FULL

1221
00:47:54,600 --> 00:47:56,400
IN THAT SPACE FOR A DIAGNOSIS IN

1222
00:47:56,400 --> 00:47:58,840
CHILDHOOD ADOLESCENTS AND ADULT

1223
00:47:58,840 --> 00:47:59,960
LIFE BUT SHOULD BE SOMETHING

1224
00:47:59,960 --> 00:48:02,200
FOLKS SHOULD BE CAREFUL AND

1225
00:48:02,200 --> 00:48:04,080
STRATEGIC ABOUT AND THOUGHTFUL

1226
00:48:04,080 --> 00:48:05,760
ABOUT AND AS I SAY PARTNER WITH

1227
00:48:05,760 --> 00:48:08,520
AUTISTIC PEOPLE AND FAMILIES. I

1228
00:48:08,520 --> 00:48:11,240
WANTED TO MENTION BRIEFLY,

1229
00:48:11,240 --> 00:48:14,320
SUSAN, RELATED TO WHAT WAS

1230
00:48:14,320 --> 00:48:16,120
MENTIONED ON -- I CONCUR WHAT

1231
00:48:16,120 --> 00:48:19,040
WAS MENTIONED ON SUBSTANCE USE

1232
00:48:19,040 --> 00:48:21,080
AMONG AUTISTIC FOR INSTANCE

1233
00:48:21,080 --> 00:48:22,520
ADOLESCENTS AND ADULTS, I HOPE

1234
00:48:22,520 --> 00:48:24,160
IT IS NOT REALLY HAPPENING SO

1235
00:48:24,160 --> 00:48:25,840
MUCH AS FAR AS SUBSTANCE USE

1236
00:48:25,840 --> 00:48:27,960
AMONG YOUNGER KIDS. IS THAT THAT

1237
00:48:27,960 --> 00:48:29,840
IS AN AREA WHERE RESEARCH THAT

1238
00:48:29,840 --> 00:48:31,280
IT COULD BE CALLED OUT AMONG

1239
00:48:31,280 --> 00:48:33,720
OTHER AREAS IN THE PLAN WHERE WE

1240
00:48:33,720 --> 00:48:35,000
HAVE UNDERRESEARCHED FOCUSES.

1241
00:48:35,000 --> 00:48:37,160
THE RESEARCH IS VERY LIMITED,

1242
00:48:37,160 --> 00:48:40,920
AROUND SUBSTANCE USE ISSUES AND

1243
00:48:40,920 --> 00:48:44,560
BARRIERS AMONG INCLUDING APPLE

1244
00:48:44,560 --> 00:48:46,320
USE AND DRUG USE ET CETERA AMONG

1245
00:48:46,320 --> 00:48:48,480
AUTISTIC ADOLESCENTS AND

1246
00:48:48,480 --> 00:48:50,040
ADULTSESES. WE NEED MORE RESEARH

1247
00:48:50,040 --> 00:48:51,240
THERE AND HOW THAT CROSS

1248
00:48:51,240 --> 00:48:54,600
CONNECTS TO THINGS LIKE MENTAL

1249
00:48:54,600 --> 00:48:55,880
HEALTH AND THE LIVED EXPERIENCE

1250
00:48:55,880 --> 00:48:59,320
OF CHALLENGES EXPERIENCED AS

1251
00:48:59,320 --> 00:49:01,880
FOLKS ON AGE THROUGH DEVELOPMENT

1252
00:49:01,880 --> 00:49:03,640
ACROSS THEIR LIFE. I WANT TO

1253
00:49:03,640 --> 00:49:06,080
MENTION BRIEFLY, WHILE I CONCUR

1254
00:49:06,080 --> 00:49:09,200
THE COMMENT JENNIFER MENTIONED

1255
00:49:09,200 --> 00:49:10,520
EARLIER AS FAR AS FOLKS FROM

1256
00:49:10,520 --> 00:49:13,920
JUVENILE JUSTICE, AND PRISON

1257
00:49:13,920 --> 00:49:15,040
POPULATIONS, IS ALSO

1258
00:49:15,040 --> 00:49:15,640
UNDERRESEARCHED AS FAR AS

1259
00:49:15,640 --> 00:49:16,960
QUALITY OF LIFE, HEALTH AND

1260
00:49:16,960 --> 00:49:17,960
WELLNESS, ET CETERA AND WHAT

1261
00:49:17,960 --> 00:49:21,640
THAT MEANS ACROSS THE LIFE SPAN.

1262
00:49:21,640 --> 00:49:23,200
IF IT IS MENTIONED AS TOPIC

1263
00:49:23,200 --> 00:49:25,880
FOCUS IN THERE, I WOULD REFER TO

1264
00:49:25,880 --> 00:49:27,520
FOLKS AS CONTACT WITH THE

1265
00:49:27,520 --> 00:49:29,000
JUSTICE SYSTEM SINCE THERE ARE

1266
00:49:29,000 --> 00:49:30,680
CERTAIN TERMS LIKE INCARCERATED

1267
00:49:30,680 --> 00:49:35,960
THAT CAN CREATE EXTRA STIGMA FOR

1268
00:49:35,960 --> 00:49:37,880
FOLKS. THAT FITS INTO LONGER

1269
00:49:37,880 --> 00:49:39,560
TERM DISCUSSION MAKING SURE TO

1270
00:49:39,560 --> 00:49:42,240
USE NEUTRAL AND STRENGTH BASED

1271
00:49:42,240 --> 00:49:42,840
INCLUSIVE LANGUAGE.

1272
00:49:42,840 --> 00:49:47,400
>> GREAT. THANK YOU. DO WE
HAVE

1273
00:49:47,400 --> 00:49:50,680
ANY COMMENTS REGARDING REDUCING

1274
00:49:50,680 --> 00:49:52,280
DISPARITIES IN AUTISM SCREENING

1275
00:49:52,280 --> 00:49:54,360
AND DIAGNOSIS? I KNOW WE HAVE

1276
00:49:54,360 --> 00:49:55,400
SOME INFORMATION IN THE DRAFT

1277
00:49:55,400 --> 00:49:56,720
BUT IF THERE ARE THINGS THAT

1278
00:49:56,720 --> 00:49:59,640
COME TO MIND THAT WE SHOULD MAKE

1279
00:49:59,640 --> 00:50:01,320
SURE THAT WE MENTION WOULD BE

1280
00:50:01,320 --> 00:50:02,520
GREAT TO GET A COUPLE OF

1281
00:50:02,520 --> 00:50:06,840
COMMENTS ABOUT THAT.

1282
00:50:06,840 --> 00:50:08,000
>> DINA.MENT

1283
00:50:08,000 --> 00:50:10,000
>> I WOULD POINT OUT TWO
THINGS.

1284
00:50:10,000 --> 00:50:12,080
I THINK THAT DIAGNOSIS FOR WOMEN

1285
00:50:12,080 --> 00:50:18,000
IS STILL A VERY HIGH PRIORITY. I

1286
00:50:18,000 --> 00:50:20,640
ALSO THINK DIAGNOSES FOR PEOPLE

1287
00:50:20,640 --> 00:50:23,200
WHO ARE GENDER DIVERSE IS STILL

1288
00:50:23,200 --> 00:50:25,640
VERY MUCH COMPLICATED. BECAUSE

1289
00:50:25,640 --> 00:50:29,240
THEY SEE THE GENDER DIVERSITY

1290
00:50:29,240 --> 00:50:31,920
VERSES THEY DON'T SEE THE AUTISM

1291
00:50:31,920 --> 00:50:34,880
SIDSIDE. I WOULD ALSO SAY WE HAA

1292
00:50:34,880 --> 00:50:37,400
HUGE VOID IN EXAMINING THE

1293
00:50:37,400 --> 00:50:42,680
POTENTIAL DELAY IN DIAGNOSES FOR

1294
00:50:42,680 --> 00:50:44,560
MALES WHO HAVE LOW SUPPORT

1295
00:50:44,560 --> 00:50:46,800
NEEDS. WE TALK ALL THE TIME HOW

1296
00:50:46,800 --> 00:50:49,400
MUCH MORE COMMON DIAGNOSIS IS

1297
00:50:49,400 --> 00:50:51,160
FOR MALES, HOWEVER SOMEONE

1298
00:50:51,160 --> 00:50:53,600
WORKING IN THE ADULT COMMUNITY,

1299
00:50:53,600 --> 00:50:55,840
I CONTINUE TO HEAR FROM MALES

1300
00:50:55,840 --> 00:50:58,000
THAT THE THING WE HAVE

1301
00:50:58,000 --> 00:51:00,000
STEREOTYPED AS A PEAL EXPERIENCE

1302
00:51:00,000 --> 00:51:04,280
OF ADHD CAMOUFLAGING, MASKING,

1303
00:51:04,280 --> 00:51:06,800
BEING A BARRIER IS HAPPENING AS

1304
00:51:06,800 --> 00:51:08,720
WELL TO MALES, AND NO ONE IS

1305
00:51:08,720 --> 00:51:09,800
DOING RESEARCH TO SEE THE

1306
00:51:09,800 --> 00:51:13,000
FREQUENCY OF THAT, TO SEE IF IT

1307
00:51:13,000 --> 00:51:14,320
PARALLELS TO THE SIMILAR

1308
00:51:14,320 --> 00:51:16,080
EXPERIENCE OF AUTISTIC WOMEN, TO

1309
00:51:16,080 --> 00:51:18,840
SEE IF THEIR EXPERIENCING

1310
00:51:18,840 --> 00:51:21,280
INCORRECT MENTAL HEALTH

1311
00:51:21,280 --> 00:51:23,760
DIAGNOSES COMMON AMONG WOMEN, I

1312
00:51:23,760 --> 00:51:27,440
THINK THAT QUITE OFTEN WE ASSIGN

1313
00:51:27,440 --> 00:51:29,200
THESE THINGS TO BINARY GENDER

1314
00:51:29,200 --> 00:51:30,880
STATUSES WHEN WE HAVEN'T DONE

1315
00:51:30,880 --> 00:51:33,560
THE COMPLETE RESEARCH ON THAT.

1316
00:51:33,560 --> 00:51:35,800
SO I THINK THAT THAT IS A GAP IN

1317
00:51:35,800 --> 00:51:38,840
TERMS OF SCREENING AND

1318
00:51:38,840 --> 00:51:40,040
DIAGNOSIS, MANY PEOPLE ARE

1319
00:51:40,040 --> 00:51:41,280
SAYING THEIR KIDS NEVER GOT ANY

1320
00:51:41,280 --> 00:51:42,400
SERVICE IN PUBLIC SCHOOL BECAUSE

1321
00:51:42,400 --> 00:51:45,080
THEY WERE DIAGNOSED WITH ADHD

1322
00:51:45,080 --> 00:51:47,040
INSTEAD OF AUTISM. THEY GET

1323
00:51:47,040 --> 00:51:48,760
THEIR AUTISM DIAGNOSIS IN MIDDLE

1324
00:51:48,760 --> 00:51:49,920
SCHOOL OR HIGH SCHOOL WHEN THEY

1325
00:51:49,920 --> 00:51:51,240
ARE MUCH MORE EMOTIONALLY

1326
00:51:51,240 --> 00:51:54,880
FRAGILE.

1327
00:51:54,880 --> 00:52:00,520
>> THANK YOU, DINA. GREAT

1328
00:52:00,520 --> 00:52:03,600
COMMENTS. ALSO JILLEN WOULD YOU

1329
00:52:03,600 --> 00:52:05,280
LIKE TO MAKE SOME COMMENTS?

1330
00:52:05,280 --> 00:52:07,680
>> YES. I WONDER ABOUT WHO
IT IS

1331
00:52:07,680 --> 00:52:09,520
THAT COMES UP WITH DIAGNOSIS. 

1332
00:52:09,520 --> 00:52:13,280
WE ENDED UP IN DEBATE THIS LAST

1333
00:52:13,280 --> 00:52:15,240
WEEK IS THE PEDIATRICIAN, IS IT

1334
00:52:15,240 --> 00:52:17,560
A PSYCHIATRIST, IS IT SOMEBODY

1335
00:52:17,560 --> 00:52:19,680
IN PSYCHOLOGY, IS IT A GENERAL

1336
00:52:19,680 --> 00:52:23,800
PRACTITIONER. AND WHAT IS THE

1337
00:52:23,800 --> 00:52:24,840
DIFFERENCE BETWEEN RURAL AND

1338
00:52:24,840 --> 00:52:27,080
URBAN AREAS AND THE

1339
00:52:27,080 --> 00:52:30,480
QUALIFICATIONS OF THE

1340
00:52:30,480 --> 00:52:31,760
PHYSICIANS, BECAUSE PARENTS WERE

1341
00:52:31,760 --> 00:52:35,280
EVEN DEBATING, THAT CHILD

1342
00:52:35,280 --> 00:52:37,280
DOESN'T LOOK AUTISTIC BECAUSE

1343
00:52:37,280 --> 00:52:41,400
THEY WERE DIAGNOSED BY X RATHER

1344
00:52:41,400 --> 00:52:44,600
THAN Y. DOES THAT ALSO CARRY IN

1345
00:52:44,600 --> 00:52:48,720
TO THINGS AGAIN WITH ADULTS WHO

1346
00:52:48,720 --> 00:52:50,680
DOES THIS AND WE MAY HAVE

1347
00:52:50,680 --> 00:52:53,400
VARIOUS MARKERS BUT ARE THEY

1348
00:52:53,400 --> 00:52:56,160
CONSISTENT WITH THE TRAINING OF

1349
00:52:56,160 --> 00:52:58,640
VARIOUS GROUPS OF PEOPLE IN

1350
00:52:58,640 --> 00:53:01,200
RUNNING THESE EXAMINATIONS. 

1351
00:53:01,200 --> 00:53:06,240
BECAUSE I KNOW SOME UNIVERSITIES

1352
00:53:06,240 --> 00:53:07,840
THE CHILDREN'S HOSPITAL HEARING

1353
00:53:07,840 --> 00:53:12,320
IN WASHINGTON THEY HAD A WHOLE

1354
00:53:12,320 --> 00:53:16,360
TEAM WHEREAS SOME PARENTS I KNOW

1355
00:53:16,360 --> 00:53:18,840
WALKED OUT OF A PEDIATRICIAN

1356
00:53:18,840 --> 00:53:22,120
OFFICE WHERE HOURS OF EXAMINING

1357
00:53:22,120 --> 00:53:24,040
A CHILD. I DO THING THERE IS A

1358
00:53:24,040 --> 00:53:25,720
LOT OF DISPARITIES THERE. I'M

1359
00:53:25,720 --> 00:53:27,120
VERY INTERESTED TOO IN SEEING IF

1360
00:53:27,120 --> 00:53:30,000
WE CAN GET SOME MORE INCENTIVES

1361
00:53:30,000 --> 00:53:32,000
INTO BEING ABLE TO HELP PEOPLE

1362
00:53:32,000 --> 00:53:36,360
GET INTO THIS FIELD. AS WE ALSO

1363
00:53:36,360 --> 00:53:38,360
NEED IN MANY OTHER ASPECTS OF

1364
00:53:38,360 --> 00:53:39,800
AUTISM, WE NEED MORE

1365
00:53:39,800 --> 00:53:42,040
PROFESSIONALS IN MANY, MANY,

1366
00:53:42,040 --> 00:53:43,920
MANY MORE AREAS. THANK YOU.

1367
00:53:43,920 --> 00:53:47,760
>> THANK YOU FOR THOSE
COMMENTS.

1368
00:53:47,760 --> 00:53:49,240
SOUNDS LIKE A THEME ABOUT WORK

1369
00:53:49,240 --> 00:53:50,480
FORCE NEEDS AND WE WILL MAKE

1370
00:53:50,480 --> 00:53:55,000
SURE WE EMPHASIZE THAT. IN THE

1371
00:53:55,000 --> 00:53:57,120
NEW STRATEGIC PLAN. I DON'T SEE

1372
00:53:57,120 --> 00:54:00,280
ANY MORE HANDS RAIDED ON

1373
00:54:00,280 --> 00:54:02,080
QUESTION ONE. ANY -- RAISED ON

1374
00:54:02,080 --> 00:54:03,640
QUESTION ONE. ANY LAST COMMENTS

1375
00:54:03,640 --> 00:54:04,760
ABOUT THIS QUESTION? SOUNDS LIKE

1376
00:54:04,760 --> 00:54:07,920
WE HAVE HAD A -- THERE ARE

1377
00:54:07,920 --> 00:54:11,760
COUPLE MORE I SPOKE TOO SOON.

1378
00:54:11,760 --> 00:54:16,160
HARRY.

1379
00:54:16,160 --> 00:54:19,680
>> HARRY SENT ME ONE
COMMENT. HE

1380
00:54:19,680 --> 00:54:21,440
SAID ONCO MORBIDITIES THERE IS

1381
00:54:21,440 --> 00:54:24,880
AN EARLIER NEED FOR MENTAL

1382
00:54:24,880 --> 00:54:27,640
CO-MORBIDITIES MENTIONED.  NEED

1383
00:54:27,640 --> 00:54:31,160
TO LOOK AT HEALTH CO-MORBIDITIES

1384
00:54:31,160 --> 00:54:33,760
COVERED IN BIOLOGY SECTION MANY

1385
00:54:33,760 --> 00:54:36,680
WITH POOR HEALTH BUT UNADDRESSED

1386
00:54:36,680 --> 00:54:38,960
DUE TO DIAGNOSIS OVERSHOWN AND I

1387
00:54:38,960 --> 00:54:40,960
ALSO HAVE ANOTHER COMMENT FROM

1388
00:54:40,960 --> 00:54:45,560
SCOTT ROBERTSON. HE SAID I ALSO

1389
00:54:45,560 --> 00:54:47,800
MEANT TO NOTE WAITING LIST AND

1390
00:54:47,800 --> 00:54:49,360
BARRIERS, WE NEED SYSTEMS

1391
00:54:49,360 --> 00:54:51,400
NAVIGATORS FOR AUTISTIC CHILDREN

1392
00:54:51,400 --> 00:54:55,760
ADOLESCENTS AND ADULTS IN OUR

1393
00:54:55,760 --> 00:54:57,120
FAMILIES AUTISTIC PEOPLE WHO

1394
00:54:57,120 --> 00:54:59,240
HAVE OPPORTUNITIES TO WORK

1395
00:54:59,240 --> 00:55:01,000
SYSTEMS NAVIGATORS TO EMPOWER

1396
00:55:01,000 --> 00:55:03,680
FELLOW AUTISTIC PEOPLE INCLUDING

1397
00:55:03,680 --> 00:55:06,120
CHILDREN AND YOUTH AFTER

1398
00:55:06,120 --> 00:55:07,560
DIAGNOSIS, SYSTEMS 1/2 GAY ORS

1399
00:55:07,560 --> 00:55:10,840
GO A LONG WAYWARD -- NAVIGATORS

1400
00:55:10,840 --> 00:55:12,840
TO GO A LONG WAY TO BARRIERS

1401
00:55:12,840 --> 00:55:14,600
FACED BY AUTISTIC PEOPLE AND

1402
00:55:14,600 --> 00:55:19,960
THEIR FAMILIES. 

1403
00:55:19,960 --> 00:55:22,040
>> THANK YOU FOR THOSE
COMMENTS

1404
00:55:22,040 --> 00:55:23,600
HARRY. I SEE A COMMENT FROM

1405
00:55:23,600 --> 00:55:25,680
MITCHELL BURGER ALSO SAYING

1406
00:55:25,680 --> 00:55:27,040
AUTISTIC PERSON AS PEER SUPPORTS

1407
00:55:27,040 --> 00:55:28,080
BEING PART OF THE WORK FORCE IS

1408
00:55:28,080 --> 00:55:35,120
IMPORTANT.  NOT SEEING ANY MORE

1409
00:55:35,120 --> 00:55:37,400
HANDS RAISED ON THIS QUESTION.

1410
00:55:37,400 --> 00:55:38,760
SO WE ARE A LITTLE AHEAD OF

1411
00:55:38,760 --> 00:55:40,080
SCHEDULE, I WILL ASK THE GROUP

1412
00:55:40,080 --> 00:55:41,720
WOULD YOU PREFER WE GO RIGHT ON

1413
00:55:41,720 --> 00:55:43,840
TO QUESTION 2 OR TAKE OUR 15

1414
00:55:43,840 --> 00:55:51,360
MINUTE BREAK NOW? HOW MANY WANT

1415
00:55:51,360 --> 00:56:00,600
A BREAK, RAISE YOUR HAND?

1416
00:56:00,600 --> 00:56:02,400
>> NOT SEEING ANY OR NOT
SEEING

1417
00:56:02,400 --> 00:56:04,320
MANY. SO WHAT WE WILL DO IS JUST

1418
00:56:04,320 --> 00:56:06,840
MOVE RIGHT ON TO QUESTION 2 THEN

1419
00:56:06,840 --> 00:56:10,920
TAKE YOUR BREAK AFTER THAT. MY

1420
00:56:10,920 --> 00:56:12,360
SLIDE SEEMS TO HAVE DISAPPEARED

1421
00:56:12,360 --> 00:56:14,040
SO MIGHT NEED HELP FROM THE TECH

1422
00:56:14,040 --> 00:56:18,160
TEAM TO PUT THEM BACK. HAND BACK

1423
00:56:18,160 --> 00:56:28,680
CONTROLS AGAIN. THANK YOU. THAT

1424
00:56:31,560 --> 00:56:36,080
WILL GET US BACK TO WHERE WE

1425
00:56:36,080 --> 00:56:39,160
WERE. WE WILL MOVE RIGHT INTO

1426
00:56:39,160 --> 00:56:41,360
QUESTION TWO WHICH IS ON THE

1427
00:56:41,360 --> 00:56:46,840
BIOLOGY OF AUTISM. THE PROPOSED

1428
00:56:46,840 --> 00:56:52,600
SHORTENED QUESTION PLEASE MUTE. 

1429
00:56:52,600 --> 00:56:54,400
IS WHAT IS THE BIOLOGY

1430
00:56:54,400 --> 00:56:58,920
UNDERLYING AUTISM? SO THAT

1431
00:56:58,920 --> 00:57:01,840
SIMPLIFIES THAT QUESTION. AND

1432
00:57:01,840 --> 00:57:03,480
DIFFERENT KINDS OF TOPICS

1433
00:57:03,480 --> 00:57:06,040
INCLUDED IN THIS SECTION INCLUDE

1434
00:57:06,040 --> 00:57:08,800
MOLECULAR MECHANISMS AND GENES

1435
00:57:08,800 --> 00:57:10,720
IMPLICATED IN AUTISM, STRUCTURE

1436
00:57:10,720 --> 00:57:14,280
AND FUNCTION OF BRAIN CIRCUITS,

1437
00:57:14,280 --> 00:57:15,920
SENSORY AND MOTOR DIFFERENCES,

1438
00:57:15,920 --> 00:57:18,560
COGNITIVE AND COMMUNICATION

1439
00:57:18,560 --> 00:57:20,800
DIFFERENCES, THE IMMUNE SYSTEM

1440
00:57:20,800 --> 00:57:22,560
AND DEVELOPMENT OF AUTISM.

1441
00:57:22,560 --> 00:57:26,320
SECTION AND GENDER DIFFERENCES. 

1442
00:57:26,320 --> 00:57:28,640
LONGITUDINAL STUDIES

1443
00:57:28,640 --> 00:57:29,560
CO-OCCURRING CONDITIONS AND

1444
00:57:29,560 --> 00:57:32,040
RESEARCH POLICY ISSUES INCLUDING

1445
00:57:32,040 --> 00:57:34,840
DATA SHARING ETHICS INCLUSION OF

1446
00:57:34,840 --> 00:57:35,920
DIVERSE RESEARCH PARTICIPANTS

1447
00:57:35,920 --> 00:57:37,400
AND AUTISTIC INDIVIDUALS ACROSS

1448
00:57:37,400 --> 00:57:38,720
THE ENTIRE SPECTRUM AND ACROSS

1449
00:57:38,720 --> 00:57:41,520
THE LIFE SPAN. SO THOSE ARE SOME

1450
00:57:41,520 --> 00:57:44,520
OF THE TOPICS WE TOUCHED ON IN

1451
00:57:44,520 --> 00:57:46,320
THE DRAFT, SIMILAR TO LAST TIME

1452
00:57:46,320 --> 00:57:47,800
THE SAME TWO DISCUSSION

1453
00:57:47,800 --> 00:57:50,160
QUESTIONS I PREPARED FOR EACH OF

1454
00:57:50,160 --> 00:57:52,440
THESE SECTIONS, ARE THERE ANY

1455
00:57:52,440 --> 00:57:53,480
IMPORTANT TOPICS OR POINTS WE

1456
00:57:53,480 --> 00:57:56,480
NEED TO INCLUDE WITHIN THIS. ARE

1457
00:57:56,480 --> 00:57:58,960
THERE SOME RECENT CHANGES SHIFTS

1458
00:57:58,960 --> 00:58:02,360
IN THE FIELD THAT COULD IMPACT

1459
00:58:02,360 --> 00:58:04,840
THE DIRECTION SINCE WE LAST

1460
00:58:04,840 --> 00:58:07,880
UPDATED THE PLAN IN 2017. SO

1461
00:58:07,880 --> 00:58:09,600
THINK ABOUT THAT. ANYTHING THAT

1462
00:58:09,600 --> 00:58:11,920
YOU THINK SHOULD INFORM US ABOUT

1463
00:58:11,920 --> 00:58:13,360
WHAT THE NEW DIRECTIONS SHOULD

1464
00:58:13,360 --> 00:58:16,280
BE IF THERE IS GOING TO BE SOME

1465
00:58:16,280 --> 00:58:19,280
SHIFT IN CERTAIN AREAS. SO I

1466
00:58:19,280 --> 00:58:21,800
WILL TAKE THE FIRST QUESTION

1467
00:58:21,800 --> 00:58:26,120
FROM OR COMMENT FROM DINA

1468
00:58:26,120 --> 00:58:26,440
GASTNER.

1469
00:58:26,440 --> 00:58:27,520
>> THINGS I THINK MIGHT BE

1470
00:58:27,520 --> 00:58:30,200
MISSING IS CO-OCCURRING PHYSICAL

1471
00:58:30,200 --> 00:58:31,560
DISABILITY CONDITIONS WITH THE

1472
00:58:31,560 --> 00:58:34,120
RECENT INTEREST IN THE STUDY OF

1473
00:58:34,120 --> 00:58:40,400
SAY FOR EXAMPLE EILERS DAN LOS,

1474
00:58:40,400 --> 00:58:41,040
POTTS OTHER CONDITIONS SUCH AS

1475
00:58:41,040 --> 00:58:43,360
THAT, THE INTERSECTIONALITY WITH

1476
00:58:43,360 --> 00:58:46,080
LONG HAUL COVID. IS AN AREA, AND

1477
00:58:46,080 --> 00:58:48,280
THE INTERSECTIONALITY WITH THE

1478
00:58:48,280 --> 00:58:51,120
PHYSICAL AND EMOTIONAL

1479
00:58:51,120 --> 00:58:54,360
IMPLICATIONS OF BOTH SHORT TERM

1480
00:58:54,360 --> 00:58:59,200
INTENSE AND LONG TERM CHRONIC

1481
00:58:59,200 --> 00:58:59,480
TRAUMA.

1482
00:58:59,480 --> 00:59:01,160
>> THANK YOU FOR THOSE. I
KNOW

1483
00:59:01,160 --> 00:59:04,600
WE DID HAVE SOMETHING ABOUT

1484
00:59:04,600 --> 00:59:05,480
EILERS DAN LOS, I DON'T THINK WE

1485
00:59:05,480 --> 00:59:09,040
HAVE ANYTHING ABOUT POTTS. AND

1486
00:59:09,040 --> 00:59:09,960
LONG HAUL COVID IS SOMETHING

1487
00:59:09,960 --> 00:59:11,480
THAT WE CAN TAKE INTO

1488
00:59:11,480 --> 00:59:14,080
CONSIDERATION AND TRAUMA IS

1489
00:59:14,080 --> 00:59:15,000
INCLUDED IN ANOTHER SECTION BUT

1490
00:59:15,000 --> 00:59:17,680
WE CAN SEE IF THERE IS ANY

1491
00:59:17,680 --> 00:59:19,280
OVERLAP NEEDED HERE IN QUESTION

1492
00:59:19,280 --> 00:59:21,280
2. THANK YOU FOR ALL THOSE

1493
00:59:21,280 --> 00:59:22,840
COMMENTS. IN PREVIOUS MEETINGS

1494
00:59:22,840 --> 00:59:25,840
YOU MENTIONED TRAUMA AS AN AREA,

1495
00:59:25,840 --> 00:59:27,720
WE DID TRY TO MAKE SURE THAT WAS

1496
00:59:27,720 --> 00:59:29,880
INCLUDED IN ANOTHER PART OF THE

1497
00:59:29,880 --> 00:59:30,240
STRATEGIC PLAN.

1498
00:59:30,240 --> 00:59:31,360
>> THANK YOU.

1499
00:59:31,360 --> 00:59:33,880
>> WE APPRECIATE THAT.
LOOKS

1500
00:59:33,880 --> 00:59:37,600
LIKE STEVEN HAS A COMMENT.

1501
00:59:37,600 --> 00:59:41,280
>> HI THERE. ARI SENT ME A

1502
00:59:41,280 --> 00:59:42,440
COMMENT ABOUT INTERSECTIONALITY

1503
00:59:42,440 --> 00:59:48,320
WITH MOVEMENT DISORDER. 

1504
00:59:48,320 --> 00:59:50,000
>> THANK YOU. I DON'T
THINK THAT

1505
00:59:50,000 --> 00:59:52,400
HAS EVER BEEN COVERED BEFORE IN

1506
00:59:52,400 --> 00:59:59,400
THE PREVIOUS STRATEGIC PLAN. SO

1507
00:59:59,400 --> 01:00:01,880
OTHER ISSUES THAT COME TO MIND

1508
01:00:01,880 --> 01:00:02,880
OF THINGS YOU FEEL ARE IMPORTANT

1509
01:00:02,880 --> 01:00:05,640
FOR US TO MENTION IN THE NEW

1510
01:00:05,640 --> 01:00:08,400
STRATEGIC PLAN RELATED TO THE

1511
01:00:08,400 --> 01:00:09,880
BIOLOGY OF AUTISM? AND THE

1512
01:00:09,880 --> 01:00:11,600
BIOLOGY OF CO-OCCURRING

1513
01:00:11,600 --> 01:00:12,800
CONDITIONS? WE DO INCLUDE

1514
01:00:12,800 --> 01:00:17,240
PHYSICAL AND MENTAL HEALTH

1515
01:00:17,240 --> 01:00:21,280
CONDITIONS. SCOTT.

1516
01:00:21,280 --> 01:00:28,120
>> WHAT I WONDER TOO IS
WHETHER

1517
01:00:28,120 --> 01:00:31,120
IT MAYBE HELPFUL TO THINK

1518
01:00:31,120 --> 01:00:32,200
STRATEGICALLY ABOUT THE -- HOW

1519
01:00:32,200 --> 01:00:34,640
THIS CHAPTER IS NAMED GIVEN ALL

1520
01:00:34,640 --> 01:00:37,960
TOPICS IT ENCOMPASSES AND WHEN

1521
01:00:37,960 --> 01:00:39,400
FOLKS THINK BIOLOGY THEY MAY NOT

1522
01:00:39,400 --> 01:00:40,960
NECESSARILY BE THINKING

1523
01:00:40,960 --> 01:00:41,760
COGNITIVE COMMUNICATION

1524
01:00:41,760 --> 01:00:43,080
DIFFERENCES OR SENSORY MOTOR

1525
01:00:43,080 --> 01:00:43,760
DIFFERENCES, ET CETERA.  SO I

1526
01:00:43,760 --> 01:00:45,640
DON'T KNOW IF THAT SOMETHING

1527
01:00:45,640 --> 01:00:46,800
THAT THE COMMITTEE COULD

1528
01:00:46,800 --> 01:00:48,240
CONSIDER IS I KNOW THIS IS

1529
01:00:48,240 --> 01:00:49,920
HISTORICALLY CALLED BIOLOGY

1530
01:00:49,920 --> 01:00:51,680
SECTION BUT I THINK IT IS GROWN

1531
01:00:51,680 --> 01:00:53,680
TO ENCOMPASS SOME OTHER AREAS

1532
01:00:53,680 --> 01:00:57,760
THAT MAY NOT FIT AS NEATLY IN TO

1533
01:00:57,760 --> 01:00:59,680
BIOLOGY. I WOULD PUT IN

1534
01:00:59,680 --> 01:01:02,960
EXECUTIVE FUNCTIONING, WOULD FIT

1535
01:01:02,960 --> 01:01:04,960
IN THERE AS FAR AS WITH SENSORY

1536
01:01:04,960 --> 01:01:06,680
MOTOR DIFFERENCES ARE VASTLY

1537
01:01:06,680 --> 01:01:07,920
STUDIED IN AUTISM AND IS THAT

1538
01:01:07,920 --> 01:01:10,360
GOING TO FUNCTION MORE SO AMONG

1539
01:01:10,360 --> 01:01:12,680
CHILDREN YOUTH AND ADULTS, WE

1540
01:01:12,680 --> 01:01:14,760
HAVE MAJOR ISSUE AREA THERE WITH

1541
01:01:14,760 --> 01:01:16,160
-- THAT I HAVE SEEN WITH REVIEW

1542
01:01:16,160 --> 01:01:17,400
PAPERS RECENTLY, I CAN SEND YOU

1543
01:01:17,400 --> 01:01:19,880
THE LITERATURE, SUSAN, IS ON

1544
01:01:19,880 --> 01:01:20,920
EXECUTIVE FUNCTIONING AND THE

1545
01:01:20,920 --> 01:01:23,840
SENSORY MOTOR, IS THAT WE -- IT

1546
01:01:23,840 --> 01:01:25,600
IS VERY COMMON FOR CLINICIANS

1547
01:01:25,600 --> 01:01:27,960
AND OTHERS TO BE STILL THINKING

1548
01:01:27,960 --> 01:01:31,680
OF AUTISM SINGULARLY AS SOCIAL

1549
01:01:31,680 --> 01:01:33,640
COMMUNICATION. LEAVING PRETTY

1550
01:01:33,640 --> 01:01:34,640
MUCH EVERYTHING ELSE OUT ABOUT

1551
01:01:34,640 --> 01:01:36,800
THE LIVED EXPERIENCE. THOUGH

1552
01:01:36,800 --> 01:01:37,880
EXECUTIVE FUNCTION SENSORY MOTOR

1553
01:01:37,880 --> 01:01:40,920
THERE ARE SIGNIFICANT CHALLENGES

1554
01:01:40,920 --> 01:01:45,000
TO FOLKS IN THESE AREAS.  THAT

1555
01:01:45,000 --> 01:01:46,920
IS HELPFUL FOR AUTISTIC CHILDREN

1556
01:01:46,920 --> 01:01:49,480
ADOLESCENTS AND ADULTS AND OUR

1557
01:01:49,480 --> 01:01:51,200
FAMILIES FOR SUPPORT AND WHAT

1558
01:01:51,200 --> 01:01:53,760
HAPPENS FOR RESEARCH PRACTICE

1559
01:01:53,760 --> 01:01:57,600
AND POLICY CHANGE IN THIS SPACE

1560
01:01:57,600 --> 01:02:01,160
IS REALLY KEY. FOR ADDRESSING

1561
01:02:01,160 --> 01:02:03,880
THAT AREA IN TERMS OF GAPS ON

1562
01:02:03,880 --> 01:02:07,800
THE LITERATURE IN THAT SPACE. I

1563
01:02:07,800 --> 01:02:09,160
THINK ALSO COGNITIVE ADAPTATIONS

1564
01:02:09,160 --> 01:02:13,200
THAT FOLKS MAY MAKE AS THEY GROW

1565
01:02:13,200 --> 01:02:14,880
UP THROUGH LIFE, THAT IS SORT OF

1566
01:02:14,880 --> 01:02:16,240
COVERED BY COGNITIVE DIFFERENCE

1567
01:02:16,240 --> 01:02:20,760
BUT I THINK ALSO THAT THIS FITS

1568
01:02:20,760 --> 01:02:24,320
INTO MASKING AND CAMOUFLAGING

1569
01:02:24,320 --> 01:02:26,240
AUTISM, HOW SHIFTS AS FAR AS HOW

1570
01:02:26,240 --> 01:02:28,520
DO SOME FOLKS LEARN TO ADAPT AND

1571
01:02:28,520 --> 01:02:31,040
WHAT WOULD BE HELPFUL FROM

1572
01:02:31,040 --> 01:02:33,400
LEARNING FROM THAT MAYBE HELPFUL

1573
01:02:33,400 --> 01:02:34,880
FOR OTHER AUTISTIC PEOPLE FOR

1574
01:02:34,880 --> 01:02:36,480
SUPPORTING EMPOWERMENT FOR

1575
01:02:36,480 --> 01:02:39,120
AUTISTIC PEOPLE AS FOLKS AGE

1576
01:02:39,120 --> 01:02:40,080
THROUGH CHILDHOOD AS LESS SENTS

1577
01:02:40,080 --> 01:02:42,720
AND ADULT LIFE, THAT IS ALSO

1578
01:02:42,720 --> 01:02:44,400
UNDERSTUDY AND FOCUSED IN

1579
01:02:44,400 --> 01:02:45,520
PRACTICE IS WHAT THE ADAPTATION

1580
01:02:45,520 --> 01:02:46,920
PROCESS LOOKS LIKE, WHAT

1581
01:02:46,920 --> 01:02:48,840
RESILIENCE LOOKS LIKE, WHAT

1582
01:02:48,840 --> 01:02:51,040
CHALLENGES LOOKS LIKE AND THERE

1583
01:02:51,040 --> 01:02:52,960
MAYBE LESSONS LEARNED FROM WHAT

1584
01:02:52,960 --> 01:02:54,880
IS HELPFUL FOR CERTAIN AUTISTIC

1585
01:02:54,880 --> 01:02:56,120
PEOPLE THAT WE CAN BE LIKE OH

1586
01:02:56,120 --> 01:03:06,560
HOW CAN WE APPLY THIS FOR

1587
01:03:07,480 --> 01:03:08,560
NAVIGATING CHALLENGES AND

1588
01:03:08,560 --> 01:03:09,120
DIFFICULTIES.

1589
01:03:09,120 --> 01:03:12,520
>> THANK YOU FOR THOSE
COMMENTS.

1590
01:03:12,520 --> 01:03:13,880
WE ARE OPEN TO OTHER

1591
01:03:13,880 --> 01:03:15,240
SUGGESTIONS, IT HAS BEEN

1592
01:03:15,240 --> 01:03:16,560
HISTORICALLY THE QUESTION HAS

1593
01:03:16,560 --> 01:03:20,240
BEEN NAMED BIOLOGY FOR SOMETHING

1594
01:03:20,240 --> 01:03:22,480
SHORT, WE CAN DO BIOLOGY AND

1595
01:03:22,480 --> 01:03:24,360
BEHAVIOR BUT THAT STILL MIGHT

1596
01:03:24,360 --> 01:03:25,200
NOT HAVE ENOUGH IN IT.  WE ARE

1597
01:03:25,200 --> 01:03:28,600
TRYING TO GO FOR SOMETHING NOT

1598
01:03:28,600 --> 01:03:30,320
OVERTLY LONG BUT IF YOU HAVE A

1599
01:03:30,320 --> 01:03:31,680
SUGGESTION OR ANYONE ELSE ON THE

1600
01:03:31,680 --> 01:03:34,000
COMMITTEE HAS SUGGESTION OF

1601
01:03:34,000 --> 01:03:38,760
SOMETHING SHORT TO CAPTURE MORE

1602
01:03:38,760 --> 01:03:40,200
FEEL FREE TO SUGGEST AND IT

1603
01:03:40,200 --> 01:03:41,560
DOESN'T HAVE TO BE DONE NOW,

1604
01:03:41,560 --> 01:03:42,760
DONE IN THE SURVEY WHEN YOU GET

1605
01:03:42,760 --> 01:03:53,200
IT.  NEXT TO JALEN PRINCE.

1606
01:03:53,480 --> 01:03:54,720
>>

1607
01:03:54,720 --> 01:03:59,720
OPERATOR:  I HAVE QUESTIONS TOO

1608
01:03:59,720 --> 01:04:01,120
ABOUT DIFFERENT TYPES OF MENTAL

1609
01:04:01,120 --> 01:04:05,080
HEALTH AND MENTAL WELLNESS. IF

1610
01:04:05,080 --> 01:04:08,600
THERE IS A BIOLOGY WHERE SOMEONE

1611
01:04:08,600 --> 01:04:10,720
HAS MOLECULAR SITUATION, TRYING

1612
01:04:10,720 --> 01:04:13,880
TO BE VERY GENERAL IN THIS

1613
01:04:13,880 --> 01:04:15,560
WITHOUT GETTING OVERLY SPECIFIC

1614
01:04:15,560 --> 01:04:17,320
BUT SOMETHING THAT IS PART OF

1615
01:04:17,320 --> 01:04:21,560
THEIR SYSTEM AT BIRTH THAT CAUSE

1616
01:04:21,560 --> 01:04:25,920
MENTAL HEALTH ISSUES AS OPPOSED

1617
01:04:25,920 --> 01:04:28,120
TO ACQUIRE MENTAL HEALTH ISSUES

1618
01:04:28,120 --> 01:04:29,800
DUE TO STRESS LONELINESS,

1619
01:04:29,800 --> 01:04:33,480
DEPRESSION, ISOLATION, SEEMS

1620
01:04:33,480 --> 01:04:35,360
LIKE WE NEED TO LOOK AT THE

1621
01:04:35,360 --> 01:04:39,640
BIOLOGY OF ONE ASPECT HOW WE CAN

1622
01:04:39,640 --> 01:04:44,600
PREVENT MENTAL HEALTH ISSUES

1623
01:04:44,600 --> 01:04:45,440
FROM DEVELOPING.

1624
01:04:45,440 --> 01:04:47,960
>> MAKES SENSE. I THINK IN

1625
01:04:47,960 --> 01:04:51,400
QUESTION 6 WE DID TRY TO BRING

1626
01:04:51,400 --> 01:04:55,040
OUT MORE AS DINA MENTIONED THE

1627
01:04:55,040 --> 01:04:57,120
TRAUMA ASPECT BUT SOME ACQUIRED

1628
01:04:57,120 --> 01:04:59,920
OR ENVIRONMENTAL STRESSORS SO WE

1629
01:04:59,920 --> 01:05:02,520
COULD MAKE SURE THERE IS SOME

1630
01:05:02,520 --> 01:05:04,720
CROSS TALK ABOUT THOSE BETWEEN

1631
01:05:04,720 --> 01:05:07,480
QUESTION 2 AND QUESTION 6.

1632
01:05:07,480 --> 01:05:08,040
>> THANK YOU.

1633
01:05:08,040 --> 01:05:10,320
>> THAT IS IMPORTANT AND

1634
01:05:10,320 --> 01:05:11,240
CERTAINLY DOES CONTRIBUTE TO

1635
01:05:11,240 --> 01:05:15,280
QUALITY OF LIFE ISSUES FOR

1636
01:05:15,280 --> 01:05:16,960
PEOPLE NEXT TO STEPHEN, WRITTEN

1637
01:05:16,960 --> 01:05:19,600
COMMENT?

1638
01:05:19,600 --> 01:05:21,720
>> BRIEF COMMENT FROM
SUSAN

1639
01:05:21,720 --> 01:05:24,560
RIVERA. WE SHOULD CONSIDER TITLE

1640
01:05:24,560 --> 01:05:25,960
BIOLOGY IN BEHAVIOR FOR QUESTION

1641
01:05:25,960 --> 01:05:30,720
NUMBER 2.

1642
01:05:30,720 --> 01:05:32,800
>> THAT WOULD BE QUICK
EASY

1643
01:05:32,800 --> 01:05:38,760
STILL NOT OVERLY LONG BUT

1644
01:05:38,760 --> 01:05:40,520
UNDERSTANDABLE, FOR NOW THAT

1645
01:05:40,520 --> 01:05:42,560
WILL CHANGE IT UNLESS ANYONE

1646
01:05:42,560 --> 01:05:43,840
ELSE BRINGS ANYTHING UP

1647
01:05:43,840 --> 01:05:52,080
DIFFERENCE. DINA.

1648
01:05:52,080 --> 01:05:55,120
>> I WANT TO POINT OUT THE
DSM 5

1649
01:05:55,120 --> 01:05:56,240
ELIMINATED EXECUTIVE FUNCTION AS

1650
01:05:56,240 --> 01:05:59,560
PART OF THE CRITERIA FOR AUTISM.

1651
01:05:59,560 --> 01:06:03,720
SO IN ORDER TO GET SERVICES TO

1652
01:06:03,720 --> 01:06:04,880
ADDRESS EXECUTIVE FUNCTION WHICH

1653
01:06:04,880 --> 01:06:07,080
IS NOT REALLY ALWAYS CAPTURING

1654
01:06:07,080 --> 01:06:10,800
COGNITIVE DIFFERENCES IN AUTI A,

1655
01:06:10,800 --> 01:06:12,360
YOU HAVE TO HAVE A SECONDARY

1656
01:06:12,360 --> 01:06:17,400
DIAGNOSIS OF ADHD. SO I THINK I

1657
01:06:17,400 --> 01:06:18,720
DON'T KNOW IF OR WHERE THAT

1658
01:06:18,720 --> 01:06:20,520
MIGHT BE ADDRESSED BUT I THINK

1659
01:06:20,520 --> 01:06:24,880
THAT WAS A HUGE FAILURE IN TERMS

1660
01:06:24,880 --> 01:06:29,880
OF DSM V CRITERIA. I DID ALSO

1661
01:06:29,880 --> 01:06:33,360
WANT TO CHAMPION IDEA OF TRAUMA

1662
01:06:33,360 --> 01:06:35,080
APPEARK HERE EVEN IF WE JUST

1663
01:06:35,080 --> 01:06:37,960
CROSS REFERENCE OVER BECAUSE WE

1664
01:06:37,960 --> 01:06:39,320
KNOW WITH THESE

1665
01:06:39,320 --> 01:06:40,200
INTERGENERATIONAL TRAUMA, THERE

1666
01:06:40,200 --> 01:06:41,680
ARE HARD CORE BIOLOGICAL CHANGES

1667
01:06:41,680 --> 01:06:46,080
IN THE NEUROLOGY WHEN SOMEONE

1668
01:06:46,080 --> 01:06:47,840
EXPERIENCES TRAUMA, ESPECIALLY A

1669
01:06:47,840 --> 01:06:49,960
CHRONIC TYPE OF TRAUMA WHICH

1670
01:06:49,960 --> 01:06:51,200
LIVING WITH AUTISM IN A WORLD

1671
01:06:51,200 --> 01:06:54,440
THAT IS NOT ADAPTABLE COULD

1672
01:06:54,440 --> 01:06:56,400
DEFINITELY BE PART OF THAT

1673
01:06:56,400 --> 01:06:57,560
PROFILE. . THEY HAVE BEEN --

1674
01:06:57,560 --> 01:06:59,000
THEY HAVE DONE A COUPLE OF

1675
01:06:59,000 --> 01:07:01,760
STUDIES WITH THE ACES AVERSE

1676
01:07:01,760 --> 01:07:03,000
CHILDHOOD EXPERIENCES STUDIES

1677
01:07:03,000 --> 01:07:04,760
THIS SHOW AUTISTIC PEOPLE HAVE

1678
01:07:04,760 --> 01:07:06,920
HUGE NUMBERS THERE. AND SO I

1679
01:07:06,920 --> 01:07:11,200
DON'T KNOW, I THINK WE LIKE TO

1680
01:07:11,200 --> 01:07:12,440
KEEP THINGS INTO NEAT BOXES BUT

1681
01:07:12,440 --> 01:07:14,920
IT IS NOT ALWAYS EASY. SO I

1682
01:07:14,920 --> 01:07:17,160
APPRECIATE THAT EFFORT BUT I

1683
01:07:17,160 --> 01:07:18,480
WILL HAVE TO YELL LOUDER FOR

1684
01:07:18,480 --> 01:07:21,560
TRAUMA.

1685
01:07:21,560 --> 01:07:23,000
>> I DON'T THINK WE HAVE

1686
01:07:23,000 --> 01:07:24,400
ANYTHING ABOUT EPIGENETICS OF

1687
01:07:24,400 --> 01:07:25,560
TRAUMA AND WHAT NOT, I DON'T

1688
01:07:25,560 --> 01:07:26,800
KNOW WHAT IS IN THE LITERATURE

1689
01:07:26,800 --> 01:07:27,800
ABOUT THAT. BUT WE COULD LOOK

1690
01:07:27,800 --> 01:07:31,680
INTO THAT AND SEE IF THERE IS A

1691
01:07:31,680 --> 01:07:33,240
PLACE TO MAKE A MENTION OF THAT

1692
01:07:33,240 --> 01:07:35,440
SOMEWHERE IN THE PLAN.

1693
01:07:35,440 --> 01:07:36,040
>> THANK YOU.

1694
01:07:36,040 --> 01:07:37,800
>> I BELIEVE I SAW PAUL
WONG'S

1695
01:07:37,800 --> 01:07:40,040
HAND UP SO I'M GOING TO GO TO

1696
01:07:40,040 --> 01:07:40,920
PAUL.

1697
01:07:40,920 --> 01:07:42,800
>> QUICK COMMENT TO SAY
VERY

1698
01:07:42,800 --> 01:07:44,360
GLAD TO SEE SENSORY MOTOR

1699
01:07:44,360 --> 01:07:46,720
DIFFERENCES CALL DOWN HERE. I'M

1700
01:07:46,720 --> 01:07:49,000
REGULARLY SURPRISED AT NUMBER OF

1701
01:07:49,000 --> 01:07:51,960
AUTISM RESEARCHERS ALBEIT ALONG

1702
01:07:51,960 --> 01:07:54,880
THE LIFE OF SOLO RESEARCHERS WHO

1703
01:07:54,880 --> 01:07:56,000
DON'T APPRECIATE THAT SENSORY

1704
01:07:56,000 --> 01:07:57,680
TARGETS ARE NOW PART OF THE

1705
01:07:57,680 --> 01:08:00,800
DIAGNOSTIC CRY FEARIA IN DSM

1706
01:08:00,800 --> 01:08:04,000
VERY. THIS IS AN EXAMPLE THAT --

1707
01:08:04,000 --> 01:08:06,200
CRITERIA. NOT GIVEN SHORT SHRIFT

1708
01:08:06,200 --> 01:08:09,800
WHEN WE THINK ABOUT LOOKING AT

1709
01:08:09,800 --> 01:08:12,440
BIOLOGY OF AUTISM. WE KNOW FROM

1710
01:08:12,440 --> 01:08:14,040
PERSONAL TESTIMONY OF AUTISTIC

1711
01:08:14,040 --> 01:08:16,680
PEOPLE THESE ISSUES ARE VERY

1712
01:08:16,680 --> 01:08:19,720
GRAVE CONCERN FOR THEM INCLUDING

1713
01:08:19,720 --> 01:08:21,880
AMONG THESE SUBGROUP OF AUTISTIC

1714
01:08:21,880 --> 01:08:24,280
WHO REQUIRE LOW SUPPORT, MANY DO

1715
01:08:24,280 --> 01:08:26,800
STILL FIND SENSORY ISSUES IN

1716
01:08:26,800 --> 01:08:28,600
PARTICULAR ARE REALLY

1717
01:08:28,600 --> 01:08:29,880
PROBLEMATIC, ARE AN ISSUE FOR

1718
01:08:29,880 --> 01:08:32,200
THEM AND THEY WANT TO SEE THIS

1719
01:08:32,200 --> 01:08:32,440
ADDRESSED.

1720
01:08:32,440 --> 01:08:35,920
>> THANK YOU, PAUL. WE
ALSO ON

1721
01:08:35,920 --> 01:08:37,600
THE TEAM AS WE HAVE BEEN

1722
01:08:37,600 --> 01:08:40,000
LISTENING TO COMMENTS ALONG WITH

1723
01:08:40,000 --> 01:08:41,440
Y'ALL AND COMMITTEE HAVE HEARD A

1724
01:08:41,440 --> 01:08:45,880
LOT ABOUT SENSORY CHALLENGES AND

1725
01:08:45,880 --> 01:08:47,480
HOW IMPROVING THOSE IMPROVE

1726
01:08:47,480 --> 01:08:48,480
PEOPLE'S QUALITY OF LIFE SO

1727
01:08:48,480 --> 01:08:49,720
BEWANT TO GIVE A BIG HIGHLIGHT

1728
01:08:49,720 --> 01:08:53,520
TO THAT AREA. NEVER EMPHASIZED

1729
01:08:53,520 --> 01:08:55,960
BY AS MUCH PREVIOUSLY IN THE

1730
01:08:55,960 --> 01:08:56,760
STRATEGIC PLAN, THANK YOU FOR

1731
01:08:56,760 --> 01:09:03,160
THAT COMMENT. NEXT I WILL GO TO

1732
01:09:03,160 --> 01:09:04,360
IVA NOVA.

1733
01:09:04,360 --> 01:09:09,240
>> THIS IS IVA NOVA SMITH.
MY

1734
01:09:09,240 --> 01:09:12,040
COMMENT IS I THINK IT WOULD BE

1735
01:09:12,040 --> 01:09:16,480
REALLY GOOD TO RESEARCH THE

1736
01:09:16,480 --> 01:09:22,480
THINGS THAT CAUSE THE PROCESS

1737
01:09:22,480 --> 01:09:24,160
DIFFERENCES IN AUTISTIC PEOPLE,

1738
01:09:24,160 --> 01:09:26,360
LIKE NERVOUS SYSTEMS ARE VERY

1739
01:09:26,360 --> 01:09:28,280
DIFFERENT, STUDYING NERVOUS

1740
01:09:28,280 --> 01:09:30,400
SYSTEMS TO HELP FIGURE OUT WHAT

1741
01:09:30,400 --> 01:09:33,160
CAUSING THE SENSORY ISSUES TO

1742
01:09:33,160 --> 01:09:34,600
PROCESS THEM. BECAUSE FOR ME

1743
01:09:34,600 --> 01:09:39,400
SENSORY ISSUES ARE NOT --

1744
01:09:39,400 --> 01:09:40,640
PAINFUL, LIKE ELECTRICITY

1745
01:09:40,640 --> 01:09:43,400
THROUGH MY BODY. AND I WOULD

1746
01:09:43,400 --> 01:09:49,240
LOVE TO BE RESEARCH ON WHAT ARE

1747
01:09:49,240 --> 01:09:52,040
THE CHEMICALS THAT ARE CAUSING

1748
01:09:52,040 --> 01:09:54,480
THAT SENSORY THING AND MAYBE

1749
01:09:54,480 --> 01:09:58,880
THERE IS A WAY WE CAN FIND THAT

1750
01:09:58,880 --> 01:10:01,200
-- NOT HAVING SENSORY PAIN ALL

1751
01:10:01,200 --> 01:10:03,120
THE TIME. IT IS ACTUALLY PAIN.

1752
01:10:03,120 --> 01:10:05,800
THANK YOU. 

1753
01:10:05,800 --> 01:10:08,240
>> THANK YOU, IVANOVA.  AN

1754
01:10:08,240 --> 01:10:10,880
IMPORTANT TOPIC AND WE WILL BE

1755
01:10:10,880 --> 01:10:12,640
SURE TO HIGHLIGHT IT IN THE NEW

1756
01:10:12,640 --> 01:10:16,520
PLAN. NEXT TO STEWART.

1757
01:10:16,520 --> 01:10:18,560
>> I HAVE JUST A VERY
BRIEF

1758
01:10:18,560 --> 01:10:20,640
COMMENT. I SEE RESEARCH POLICY

1759
01:10:20,640 --> 01:10:23,640
ISSUES IN VARIOUS ONES LISTED IN

1760
01:10:23,640 --> 01:10:26,800
THIS QUESTION. AS WELL AS

1761
01:10:26,800 --> 01:10:29,120
LONGITUDINAL STUDIES I WOULD

1762
01:10:29,120 --> 01:10:30,040
SUGGEST INCLUDE MANAGE THE

1763
01:10:30,040 --> 01:10:33,680
RESEARCH POLICY ISSUES THE

1764
01:10:33,680 --> 01:10:35,360
INFORMED CONSENT AS CHILDREN AGE

1765
01:10:35,360 --> 01:10:37,440
TO ADULT HOOD IN LONGITUDINAL

1766
01:10:37,440 --> 01:10:40,760
STUDIES. 

1767
01:10:40,760 --> 01:10:43,760
>> I THINK WE HAVE
SOMETHING

1768
01:10:43,760 --> 01:10:45,280
BRIEF RELATED TO THAT BUT NOT

1769
01:10:45,280 --> 01:10:52,080
THAT SPECIFIC TOPIC. WE WILL

1770
01:10:52,080 --> 01:10:54,240
MAKE NOTE. THAT MIGHT ALSO

1771
01:10:54,240 --> 01:10:55,560
CONNECT TO QUESTION 7.

1772
01:10:55,560 --> 01:10:58,200
>> GREAT. THANKS.

1773
01:10:58,200 --> 01:11:01,320
>> STEVEN DO YOU HAVE A
WRITTEN

1774
01:11:01,320 --> 01:11:01,760
COMMENT?

1775
01:11:01,760 --> 01:11:03,600
>> YES, I HAVE ANOTHER
COMMENT

1776
01:11:03,600 --> 01:11:07,320
FROM JENNY. I DON'T KNOW IF

1777
01:11:07,320 --> 01:11:08,640
PERHAPS I MIGHT HAVE MISSED IT

1778
01:11:08,640 --> 01:11:11,080
IN THE STRATEGIC PLAN TEXT BUT

1779
01:11:11,080 --> 01:11:13,800
CAN THERE BE A MENTION PROBABLY

1780
01:11:13,800 --> 01:11:15,400
THROUGHOUT THIS STRATEGIC PLAN

1781
01:11:15,400 --> 01:11:21,000
ABOUT MECHANISMS OF RISK AND

1782
01:11:21,000 --> 01:11:21,880
(INAUDIBLE) RATHER THAN JUST

1783
01:11:21,880 --> 01:11:22,240
RISK?

1784
01:11:22,240 --> 01:11:23,520
>> TO ANSWER THAT QUESTION
WE

1785
01:11:23,520 --> 01:11:25,840
TRIED TO REMOVE THE WORD RISK

1786
01:11:25,840 --> 01:11:28,800
THROUGH QUITE A BIT OF THE PLAN

1787
01:11:28,800 --> 01:11:31,480
AND USE ALTERNATIVE LANGUAGE

1788
01:11:31,480 --> 01:11:32,680
ABOUT PROBABILITIES AND SO

1789
01:11:32,680 --> 01:11:36,160
FORTH. T WE DID TRY TO HIGHLIGHT

1790
01:11:36,160 --> 01:11:39,040
RESILIENCE AND STRENGTH BASED

1791
01:11:39,040 --> 01:11:40,280
TYPE LANGUAGE, SO WE ATTEMPTED

1792
01:11:40,280 --> 01:11:44,160
TO DO THAT BUT WE WILL MAKE SURE

1793
01:11:44,160 --> 01:11:45,400
THAT WE ALSO LOOK BACK WHAT WE

1794
01:11:45,400 --> 01:11:48,120
HAVE TO SEE IF WILL IS ANYTHING

1795
01:11:48,120 --> 01:11:54,160
MORE WE CAN DO THERE. THANK YOU

1796
01:11:54,160 --> 01:11:56,480
FORE THAT COMMENT.

1797
01:11:56,480 --> 01:11:58,920
>> RESEARCH POLICY LIST
THERE,

1798
01:11:58,920 --> 01:12:00,680
AND PIGGY BACKING A LITTLE BIT

1799
01:12:00,680 --> 01:12:04,480
ON DR. SHAPIRO'S OBSERVATION,

1800
01:12:04,480 --> 01:12:08,440
THERE IS COMMUNITY PARTICIPATORY

1801
01:12:08,440 --> 01:12:10,320
RESEARCH BEING DONE, I WANT TO

1802
01:12:10,320 --> 01:12:12,920
LET THE COMMITTEE KNOW I'M PART

1803
01:12:12,920 --> 01:12:14,600
OF MAYBE ONE OF THREE PROJECTS

1804
01:12:14,600 --> 01:12:18,360
GOING ON LOOKING AT REDESIGNING

1805
01:12:18,360 --> 01:12:20,160
ETHICS TRAINING FOR PEOPLE WITH

1806
01:12:20,160 --> 01:12:22,400
INTELLECTUAL AND DEVELOPMENTAL

1807
01:12:22,400 --> 01:12:24,480
DISABILITIES SO THEY CAN MAKE

1808
01:12:24,480 --> 01:12:27,480
GOOD ETHICS CONTRIBUTIONS IN

1809
01:12:27,480 --> 01:12:28,480
COMMUNITY PARTICIPATORY

1810
01:12:28,480 --> 01:12:35,080
RESEARCH. SO I THINK SOMEWHAT

1811
01:12:35,080 --> 01:12:38,040
RELATED TO BEING ABLE TO BE --

1812
01:12:38,040 --> 01:12:39,880
TO GIVE AFFIRMATIVE CONSENT AS

1813
01:12:39,880 --> 01:12:44,320
CHILDREN AGE.  ETHIC TRAINING

1814
01:12:44,320 --> 01:12:46,120
FOR INDIVIDUALS CONTRIBUTING TO

1815
01:12:46,120 --> 01:12:50,480
COMMUNITY PARTICIPATORY RESEARCH

1816
01:12:50,480 --> 01:12:52,360
VALUE DATES THEY HAVE SOMETHING

1817
01:12:52,360 --> 01:12:54,480
TO OFFER AND INTRODUCE IT IS

1818
01:12:54,480 --> 01:12:56,920
LIVED EXPERIENCE INTO RESEARCH.

1819
01:12:56,920 --> 01:12:59,400
IT ALSO EMPOWERS THEM TO BE A

1820
01:12:59,400 --> 01:13:00,920
VERY STRONG CONTRIBUTING FORCE

1821
01:13:00,920 --> 01:13:04,200
IN THE RESEARCH UNDER

1822
01:13:04,200 --> 01:13:04,840
CONDITIONS.

1823
01:13:04,840 --> 01:13:06,040
>> THANK YOU FOR THAT.
YES,

1824
01:13:06,040 --> 01:13:09,360
COMMUNITY BASED PARTICIPATORY

1825
01:13:09,360 --> 01:13:11,600
RESEARCH IS SOMETHING THERE ARE

1826
01:13:11,600 --> 01:13:13,680
LOTS OF ISSUES WE ARE TRYING TO

1827
01:13:13,680 --> 01:13:14,880
HIGHLIGHT A DIFFERENT PLAN SO

1828
01:13:14,880 --> 01:13:16,240
THAT IS ONE OF THEM AND WE WILL

1829
01:13:16,240 --> 01:13:23,120
TAKE THAT INTO ACCOUNT.

1830
01:13:23,120 --> 01:13:26,560
>> MORE COMMENTS ABOUT
QUESTION

1831
01:13:26,560 --> 01:13:31,720
2 BIOLOGY AND BEHAVIOR. SCOTT. 

1832
01:13:31,720 --> 01:13:35,240
>> THANKS, SUSAN. I CONCUR
WITH

1833
01:13:35,240 --> 01:13:38,080
THE EMPHASIS ON FOR INSTANCE

1834
01:13:38,080 --> 01:13:39,880
WHAT WAS MENTIONED ON COMMUNITY

1835
01:13:39,880 --> 01:13:42,240
BASED PARTICIPATORY RESEARCH

1836
01:13:42,240 --> 01:13:44,960
PARTICIPATORY ACTION RESEARCH

1837
01:13:44,960 --> 01:13:48,880
CBPR PAR THAT I HOPE CAN BE

1838
01:13:48,880 --> 01:13:50,040
EMBRACED EMPHASIZE ALL ACROSS

1839
01:13:50,040 --> 01:13:51,040
THE BOARD BECAUSE I THINK IT

1840
01:13:51,040 --> 01:13:53,920
HELPS A LOT TO HAVE AUTISTIC

1841
01:13:53,920 --> 01:13:57,160
PEOPLE AND FAMILY MEMBERS AS

1842
01:13:57,160 --> 01:13:58,640
PARTNERS ON THAT RESEARCH

1843
01:13:58,640 --> 01:14:01,640
PROCESS TO HELP SHAPE PRACTICES

1844
01:14:01,640 --> 01:14:03,320
AND POLICY AND I THINK THAT IS

1845
01:14:03,320 --> 01:14:04,960
ANOTHER AREA THAT WOULD BE

1846
01:14:04,960 --> 01:14:07,680
HELPFUL TO EMPHASIZE UNDER STUDY

1847
01:14:07,680 --> 01:14:10,400
TOO, THAT IS THERE JUST NOT

1848
01:14:10,400 --> 01:14:13,960
ADOPTING CBPR -- I THINK THAT

1849
01:14:13,960 --> 01:14:17,920
SOMETHING, THE STRATEGIC PLAN

1850
01:14:17,920 --> 01:14:21,480
HAS LIMITATIONS I GUESS IN HOW

1851
01:14:21,480 --> 01:14:23,480
IT CONNECTS BACK TO WHAT IS

1852
01:14:23,480 --> 01:14:25,240
OPENLY FUNDED BY NIH AND OTHER

1853
01:14:25,240 --> 01:14:27,400
AGENCIES, THESE ARE MORE

1854
01:14:27,400 --> 01:14:28,320
RECOMMENDATIONS OR SUGGESTIONS

1855
01:14:28,320 --> 01:14:29,440
THAN ANYTHING BUT WOULD BE

1856
01:14:29,440 --> 01:14:30,840
HELPFUL IF MORE RESEARCH STUDIES

1857
01:14:30,840 --> 01:14:32,800
ACROSS THE BOARD COULD BE

1858
01:14:32,800 --> 01:14:34,720
ADOPTING CBPR AND PAR AND JUST

1859
01:14:34,720 --> 01:14:38,280
TO EMPHASIZE THAT STRONGLY AS

1860
01:14:38,280 --> 01:14:39,640
SOMETHING THAT WOULD HELP

1861
01:14:39,640 --> 01:14:40,800
ENHANCE RESEARCH PROCESS AND

1862
01:14:40,800 --> 01:14:44,680
QUALITY OF RESEARCH. THAT IS OUT

1863
01:14:44,680 --> 01:14:48,520
THERE. I WANT TO MENTION BRIEFLY

1864
01:14:48,520 --> 01:14:50,880
AS A ALTERNATIVE SUGGESTION FOR

1865
01:14:50,880 --> 01:14:52,920
THE TITLE OF THE SECTION MAYBE

1866
01:14:52,920 --> 01:14:54,480
SOMETHING ABOUT DEVELOPMENT LIKE

1867
01:14:54,480 --> 01:14:55,720
BIOLOGY DEVELOPMENT AND BIOLOGY

1868
01:14:55,720 --> 01:14:56,960
AND HUMAN DEVELOPMENT BECAUSE I

1869
01:14:56,960 --> 01:14:59,840
THINK REALLY THE SECTION IS

1870
01:14:59,840 --> 01:15:01,160
GROWING TO MORE BIOLOGY, THE

1871
01:15:01,160 --> 01:15:03,440
HUMAN DEVELOPMENT OF AUTISTIC

1872
01:15:03,440 --> 01:15:05,560
PEOPLE, IT IS ESPECIALLY

1873
01:15:05,560 --> 01:15:08,360
EMPHASIZE CHILDHOOD ADOLESCENT

1874
01:15:08,360 --> 01:15:11,480
AND FACT THERE IS MORE FOCUS ON

1875
01:15:11,480 --> 01:15:14,280
ADULTS IN QUESTION 6 BUT I THINK

1876
01:15:14,280 --> 01:15:16,440
THAT HUMAN DEVELOPMENT ELEMENT

1877
01:15:16,440 --> 01:15:17,680
AS FAR AS BRAIN DEVELOPMENT

1878
01:15:17,680 --> 01:15:19,920
SENSORY DEVELOPMENT MOTOR

1879
01:15:19,920 --> 01:15:21,120
DEVELOPMENT AND SUPPORTS AND

1880
01:15:21,120 --> 01:15:24,440
SERVICES THAT CAN BE HELPFUL FOR

1881
01:15:24,440 --> 01:15:25,200
THAT AS FOLKS HAVE THOSE

1882
01:15:25,200 --> 01:15:26,320
DIFFERENCES IN HUMAN DEVELOPMENT

1883
01:15:26,320 --> 01:15:27,800
ON THAT, SO MAYBE THAT IS

1884
01:15:27,800 --> 01:15:30,120
SOMETHING THAT COULD BE TINKERED

1885
01:15:30,120 --> 01:15:33,560
IS THAT ELEMENT OF THE HUMAN

1886
01:15:33,560 --> 01:15:36,400
DEVELOPMENT IN THIS SECTION THAT

1887
01:15:36,400 --> 01:15:40,640
GOES BEYOND THE BIOLOGY. I WORRY

1888
01:15:40,640 --> 01:15:43,040
ON THE BEHAVIOR TERM, THERE IS

1889
01:15:43,040 --> 01:15:44,640
ASSOCIATION WITH NEGATIVE ASPECT

1890
01:15:44,640 --> 01:15:48,760
THAT FOLKS SEE AS NON-TYPICAL

1891
01:15:48,760 --> 01:15:50,480
AREAS, I SOMETIMES HAVE BEEN AT

1892
01:15:50,480 --> 01:15:52,640
CONFERENCES AND OTHER AREAS

1893
01:15:52,640 --> 01:15:54,640
WHERE FOLKS POINT OUT IT IS

1894
01:15:54,640 --> 01:15:56,440
CRYING OR WHATEVER SCREAMING

1895
01:15:56,440 --> 01:15:58,000
YELLING, SOMETIMES STEREO TYPES

1896
01:15:58,000 --> 01:16:00,800
OR STIGMA AROUND AUTISTIC PEOPLE

1897
01:16:00,800 --> 01:16:01,880
AND GENERALIZATIONS THAT GET

1898
01:16:01,880 --> 01:16:07,760
LUMPED INTO THIS LOADED TERM USE

1899
01:16:07,760 --> 01:16:09,520
OF THE TERM BEHAVIOR. THAT IS

1900
01:16:09,520 --> 01:16:11,200
ONE REASON I HAVE REFRAINED FROM

1901
01:16:11,200 --> 01:16:12,920
USING THE TERM IN MANY RECENT

1902
01:16:12,920 --> 01:16:14,160
YEARS AND TALKED ABOUT ACTIONS

1903
01:16:14,160 --> 01:16:18,000
AND COMMUNICATION AND LIVED

1904
01:16:18,000 --> 01:16:19,760
EXPERIENCE OF FOLKS BECAUSE OF

1905
01:16:19,760 --> 01:16:22,680
THE WORD BEHAVIOR ACQUIRED SUCH

1906
01:16:22,680 --> 01:16:27,240
NEGATIVE USE AT TIMES ON

1907
01:16:27,240 --> 01:16:28,440
ADDRESSING THINGS SOMETIMES

1908
01:16:28,440 --> 01:16:31,440
STEREOTYPES AND STIGMA FROM THE

1909
01:16:31,440 --> 01:16:33,800
BIASES AMONG NON-AUTISTIC PEOPLE

1910
01:16:33,800 --> 01:16:37,520
AND HOW THEY FEEL ABOUT AND

1911
01:16:37,520 --> 01:16:39,280
FORESEE THEIR WORLD VIEW ABOUT

1912
01:16:39,280 --> 01:16:41,680
AUTISTIC PEOPLE AS WHEN WE ARE

1913
01:16:41,680 --> 01:16:47,000
CHILDREN ADOLESCENTS AND ADULTS 

1914
01:16:47,000 --> 01:16:48,920
>> THANK YOU. TALKING TO
THE

1915
01:16:48,920 --> 01:16:50,920
TEAM ABOUT WHAT WE CAN DO WITH

1916
01:16:50,920 --> 01:16:54,320
THE TITLE I RECOGNIZE BIOLOGY IS

1917
01:16:54,320 --> 01:16:56,680
-- IT DOESN'T NECESSARILY

1918
01:16:56,680 --> 01:16:58,000
CONNECT PEOPLE TO THESE

1919
01:16:58,000 --> 01:16:59,560
DIFFERENT SUB TOPICS AS EASILY

1920
01:16:59,560 --> 01:17:01,600
BUT TRY TO SEE WHAT WE CAN COME

1921
01:17:01,600 --> 01:17:04,040
UP WITH SHORT ENOUGH THAT IT IS

1922
01:17:04,040 --> 01:17:08,280
NOT OVERLY CUMBERSOME. WE WILL

1923
01:17:08,280 --> 01:17:12,040
GO TO MATTHEW SEIGEL.

1924
01:17:12,040 --> 01:17:16,280
>> THANKS SUSAN. SO PRIOR
TO THE

1925
01:17:16,280 --> 01:17:18,520
MOST RECENT COMMENT THAT WAS

1926
01:17:18,520 --> 01:17:21,360
SUGGESTING BEHAVIOR SHOULD NOT

1927
01:17:21,360 --> 01:17:23,720
BE IN THE TITLE, IF IT IS IN THE

1928
01:17:23,720 --> 01:17:25,400
TITLE AND ALSO NOT RECALLING IF

1929
01:17:25,400 --> 01:17:28,280
IT IS COVERED IN DIFFERENT

1930
01:17:28,280 --> 01:17:29,200
SECTION OF THE STRATEGIC PLAN

1931
01:17:29,200 --> 01:17:31,000
BUT IF IT IS IN THE TITLE OR

1932
01:17:31,000 --> 01:17:34,200
SOMEWHERE ELSE IN THE STRATEGIC

1933
01:17:34,200 --> 01:17:38,560
PLAN, IT DID QUEUE ME TO NOTE

1934
01:17:38,560 --> 01:17:44,320
THAT THE IACC DID A WORK SHOP

1935
01:17:44,320 --> 01:17:46,240
SPECIAL SESSION COUPLE OF YEARS

1936
01:17:46,240 --> 01:17:49,120
AGO ON BEHAVIOR IN AUTISM AND

1937
01:17:49,120 --> 01:17:50,840
SPECIFICALLY ON WHATEVER YOUR

1938
01:17:50,840 --> 01:17:52,160
PREFERRED TERM MIGHT BE

1939
01:17:52,160 --> 01:17:54,600
CHALLENGING BEHAVIOR OR BEHAVIOR

1940
01:17:54,600 --> 01:17:57,720
THAT CHALLENGES OR OTHER TERMS

1941
01:17:57,720 --> 01:18:00,280
PEOPLE USE. THAT IS AN AREA THAT

1942
01:18:00,280 --> 01:18:05,880
IS UNDERRESEARCHED IN AUTISM AND

1943
01:18:05,880 --> 01:18:06,840
WOULD BE APPROPRIATE AN AREA

1944
01:18:06,840 --> 01:18:11,520
THAT CAUSES MAJOR DIFFICULTIES

1945
01:18:11,520 --> 01:18:13,680
FOR SOME INDIVIDUAL, AND THE

1946
01:18:13,680 --> 01:18:19,600
SYSTEMS AROUND THEM. SO COULD BE

1947
01:18:19,600 --> 01:18:20,960
AREA STRATEGIC PLAN CALLS FOR

1948
01:18:20,960 --> 01:18:24,440
MORE RESEARCH TO FOCUS ON, THAT

1949
01:18:24,440 --> 01:18:26,400
CERTAINLY THE OUTPUT OF THAT

1950
01:18:26,400 --> 01:18:28,120
WORKSHOP THAT IS DONE COUPLE OF

1951
01:18:28,120 --> 01:18:29,960
YEARS AGO AS I RECALL. THANK

1952
01:18:29,960 --> 01:18:30,520
YOU.

1953
01:18:30,520 --> 01:18:33,720
>> THANK YOU, YES. FOCUS
ON

1954
01:18:33,720 --> 01:18:34,840
INDIVIDUALS WITH HIGHER SUPPORT

1955
01:18:34,840 --> 01:18:37,040
NEEDS AND WHAT THEY MIGHT NEED

1956
01:18:37,040 --> 01:18:40,600
TO GET FROM RESEARCH AND

1957
01:18:40,600 --> 01:18:42,640
SERVICES IS A THEME WOVEN IN

1958
01:18:42,640 --> 01:18:43,960
PARTS OF THE PLAN AND IT COULD

1959
01:18:43,960 --> 01:18:46,520
HAVE BEEN ON THIS LIST OF TOPICS

1960
01:18:46,520 --> 01:18:47,320
HERE, I BELIEVE THERE SOMETHING

1961
01:18:47,320 --> 01:18:49,680
ABOUT THAT HERE. BUT WE WILL

1962
01:18:49,680 --> 01:18:52,880
MAKE SURE WE EMPHASIZE AS WE

1963
01:18:52,880 --> 01:18:54,120
HAVE HEARD ABOUT THAT FROM THE

1964
01:18:54,120 --> 01:18:56,840
COMMUNITY AND THE COMMITTEE. 

1965
01:18:56,840 --> 01:19:02,840
THANK YOU FOR MENTIONING THAT. 

1966
01:19:02,840 --> 01:19:06,200
WE HAVE OTHER COMMENTS ABOUT

1967
01:19:06,200 --> 01:19:08,400
THIS. STEVEN.

1968
01:19:08,400 --> 01:19:10,760
>> HI, THERE, IN REGARDS
TO THE

1969
01:19:10,760 --> 01:19:13,840
CONVERSATION ABOUT THE TITLE

1970
01:19:13,840 --> 01:19:15,320
QUESTION 2 HARRY HAS SUGGESTION

1971
01:19:15,320 --> 01:19:16,920
TO NOT USE BEHAVIOR BECAUSE IT

1972
01:19:16,920 --> 01:19:20,480
HAS A NEGATIVE CONNOTATION, HE

1973
01:19:20,480 --> 01:19:25,720
SUGGESTED HOW SCIENCE AND

1974
01:19:25,720 --> 01:19:30,200
DEVELOPMENT. THANK YOU. I KNOW

1975
01:19:30,200 --> 01:19:32,360
WE HAVE SOME PEOPLE ON THE CALL

1976
01:19:32,360 --> 01:19:36,000
THAT MAY BE MANAGING WORK ON

1977
01:19:36,000 --> 01:19:39,120
THIS BIOLOGICAL SCIENCES

1978
01:19:39,120 --> 01:19:42,800
COGNITIVE SCIENCES AREA. DO YOU

1979
01:19:42,800 --> 01:19:46,360
HAVE ANY COMMENTS OF THINGS YOU

1980
01:19:46,360 --> 01:19:53,280
WOULD LIKE TO SEE IN THIS

1981
01:19:53,280 --> 01:19:58,520
SECTION. ANYONE ELSE? JUST

1982
01:19:58,520 --> 01:20:01,560
LOOKING DOWN THE LIST FOR

1983
01:20:01,560 --> 01:20:04,720
EXAMPLE I KNOW WE HAVE NICOLE

1984
01:20:04,720 --> 01:20:06,560
WILLIAMS IN YOUR PORTFOLIO YOU

1985
01:20:06,560 --> 01:20:10,240
HAVE SOME GRANTS THAT COVER THIS

1986
01:20:10,240 --> 01:20:10,760
AREA.

1987
01:20:10,760 --> 01:20:14,600
>> YES, SUSAN. I WAS GOING
TO

1988
01:20:14,600 --> 01:20:16,280
CHAT. ALL THE BULLET POINTS HERE

1989
01:20:16,280 --> 01:20:18,720
ARE ALREADY ENCOMPASS OUR AREAS

1990
01:20:18,720 --> 01:20:21,280
OF INTEREST THAT WE OFFER

1991
01:20:21,280 --> 01:20:22,640
ESPECIALLY A CURRENT FISCAL YEAR

1992
01:20:22,640 --> 01:20:24,880
SO WE ARE COVERED HERE.

1993
01:20:24,880 --> 01:20:31,800
>> GREAT. THANK YOU.
ANYTHING

1994
01:20:31,800 --> 01:20:37,440
ELSE ANYONE ELSE SUSAN RIVERA.

1995
01:20:37,440 --> 01:20:39,120
>> I DON'T HAVE ANY BULLET

1996
01:20:39,120 --> 01:20:40,880
POINTS TO ADD BUT REACTING TO

1997
01:20:40,880 --> 01:20:45,280
SUGGESTIONS TO CHANGE THE WORD

1998
01:20:45,280 --> 01:20:46,960
BEHAVIOR. I WANTED TO THROW IN

1999
01:20:46,960 --> 01:20:48,440
AN ALTERNATIVE THAT IS LIVED

2000
01:20:48,440 --> 01:20:52,440
EXPERIENCES.  BIOLOGY AND LIVED

2001
01:20:52,440 --> 01:20:55,840
EXPERIENCES. ONE MORE WORD BUT

2002
01:20:55,840 --> 01:20:57,600
MAYBE BETTER ENCAPSULATES SOME

2003
01:20:57,600 --> 01:20:59,120
OF THE THINGS THAT ARE NOT

2004
01:20:59,120 --> 01:21:00,760
TRADITIONALLY THOUGHT OF AS

2005
01:21:00,760 --> 01:21:02,640
BIOLOGY ON THIS LIST.

2006
01:21:02,640 --> 01:21:04,200
>> THAT IS A TOUGH ONE
BECAUSE

2007
01:21:04,200 --> 01:21:07,200
WE HAVE SO MUCH ABOUT LIVED

2008
01:21:07,200 --> 01:21:10,120
EXPERIENCE IN QUESTION 6 THAT I

2009
01:21:10,120 --> 01:21:11,720
WOULDN'T WANT TO GET CONFUSED

2010
01:21:11,720 --> 01:21:14,560
AND FOR PEOPLE TO EXPECT TO SEE

2011
01:21:14,560 --> 01:21:16,360
PEOPLE EXPERIENCES WITH FINDING

2012
01:21:16,360 --> 01:21:17,600
HOUSING OR SOMETHING IN HERE

2013
01:21:17,600 --> 01:21:20,560
THAT IS NOT IN THIS SECTION.

2014
01:21:20,560 --> 01:21:23,000
>> I WANT TO TRY TO FIND

2015
01:21:23,000 --> 01:21:23,680
ALTERNATIVE BECAUSE I DON'T

2016
01:21:23,680 --> 01:21:29,160
THINK BIOLOGY ON ITS OWN DOES US

2017
01:21:29,160 --> 01:21:32,120
ANY GOOD. DOES A DISSERVICE I

2018
01:21:32,120 --> 01:21:35,240
THINK SO JUST TRYING TO

2019
01:21:35,240 --> 01:21:36,680
BRAINSTORM WE CAN INDICATE THESE

2020
01:21:36,680 --> 01:21:39,240
THINGS ARE BEHAVIORS AND NOT

2021
01:21:39,240 --> 01:21:42,120
NECESSARILY BIOLOGY. WITHOUT

2022
01:21:42,120 --> 01:21:44,280
POINT WELL TAKEN WITHOUT

2023
01:21:44,280 --> 01:21:45,520
BRINGING UP THAT NEGATIVE

2024
01:21:45,520 --> 01:21:47,440
CONNOTATION.

2025
01:21:47,440 --> 01:21:49,640
>> WHAT ABOUT SAY BIOLOGY

2026
01:21:49,640 --> 01:21:51,760
COGNITION AND COMMUNICATION OR

2027
01:21:51,760 --> 01:21:55,280
SOMETHING LIKE THAT? THREE WORDS

2028
01:21:55,280 --> 01:21:59,160
BUT STILL SHORT.  IS THAT

2029
01:21:59,160 --> 01:22:02,120
IMPROVEMENT OR NOT REALLY?

2030
01:22:02,120 --> 01:22:07,600
>> IT IS WORTH
CONSIDERING. 

2031
01:22:07,600 --> 01:22:10,680
>> BOTH COMMUNICATION
RELATED

2032
01:22:10,680 --> 01:22:12,600
RESEARCH AND COGNITIVE RESEARCH

2033
01:22:12,600 --> 01:22:15,160
WERE TWO AREAS THAT BACK IN THE

2034
01:22:15,160 --> 01:22:16,320
JANUARY MEETING SOMEONE BROUGHT

2035
01:22:16,320 --> 01:22:17,840
UP OH YOU DON'T HAVE ANYTHING IN

2036
01:22:17,840 --> 01:22:19,600
THE PLAN ABOUT COMMUNICATION AND

2037
01:22:19,600 --> 01:22:21,240
THERE ACTUALLY IS RESEARCH ON

2038
01:22:21,240 --> 01:22:23,000
THAT TOPIC AND THIS SECTION BY

2039
01:22:23,000 --> 01:22:24,160
THE TITLE BIOLOGY IT WAS HARD TO

2040
01:22:24,160 --> 01:22:27,840
TELL. SO WE CAN CONSIDER THAT AS

2041
01:22:27,840 --> 01:22:30,040
WELL. YOU CAN CONTINUE TO SEND

2042
01:22:30,040 --> 01:22:31,680
US COMMENTS IF ANYONE COMES UP

2043
01:22:31,680 --> 01:22:35,680
WITH A GREAT IDEA ON THAT. 

2044
01:22:35,680 --> 01:22:43,720
MATTHEW, COMMENT? THAT HAND WENT

2045
01:22:43,720 --> 01:22:44,120
DOWN.

2046
01:22:44,120 --> 01:22:46,160
>> ALICIA HOLIDAY, I DON'T
KNOW

2047
01:22:46,160 --> 01:22:50,720
IF YOU HAVE ANYTHING ELSE

2048
01:22:50,720 --> 01:22:52,480
MATTHEW DID YOU HAVE SOMETHING?

2049
01:22:52,480 --> 01:22:54,240
>> I'M SORRY I TOOK MY
HAND

2050
01:22:54,240 --> 01:22:56,840
DOWN. I DID WANT TO COMMENT ON

2051
01:22:56,840 --> 01:23:00,880
THIS FOCUS ON LANGUAGE AND

2052
01:23:00,880 --> 01:23:02,560
ASSUMPTIONS ABOUT CONNOTATIONS.

2053
01:23:02,560 --> 01:23:04,600
SO THE TERM BEHAVIORS ENTIRELY

2054
01:23:04,600 --> 01:23:09,680
NEUTRAL TERM.  GIVING A

2055
01:23:09,680 --> 01:23:12,920
VALENTINE'S CARD TO YOUR

2056
01:23:12,920 --> 01:23:14,440
ROMANTIC OTHER IS BEHAVIOR, MOST

2057
01:23:14,440 --> 01:23:17,120
OF US THINK POSITIVE BEHAVIOR SO

2058
01:23:17,120 --> 01:23:18,480
THE TERM ITSELF DOESN'T HAVE A

2059
01:23:18,480 --> 01:23:21,320
CONNOTATION AND WE CAN COME UP

2060
01:23:21,320 --> 01:23:25,480
WITH PROPOSALS OF THINGS THAT --

2061
01:23:25,480 --> 01:23:27,720
I CAN PROPOSE SOMETHING HAS

2062
01:23:27,720 --> 01:23:30,720
NEGATIVE OR POSITIVE MUTUAL

2063
01:23:30,720 --> 01:23:31,760
CONNOTATION SO WE SHOULD BE

2064
01:23:31,760 --> 01:23:34,360
CONSCIOUS RULING OUT ENTIRE

2065
01:23:34,360 --> 01:23:37,800
TERMS AND PIECES OF LANGUAGE, I

2066
01:23:37,800 --> 01:23:40,160
NOT TRYING TO INVALIDATE ANY

2067
01:23:40,160 --> 01:23:41,760
EXPERIENCE SCOTT HAS HAD BUT

2068
01:23:41,760 --> 01:23:43,680
POINTING OUT THERE ARE MULTIPLE

2069
01:23:43,680 --> 01:23:47,440
EXPERIENCES AND SO I THINK THIS

2070
01:23:47,440 --> 01:23:48,440
COMMITTEE I WANT TO NOTE THE

2071
01:23:48,440 --> 01:23:50,960
PAST YEAR SPENT A LOT OF TIME

2072
01:23:50,960 --> 01:23:56,120
TALKING ABOUT LANGUAGE AND I

2073
01:23:56,120 --> 01:23:57,160
THINK THAT SOMETIMES THAT GETS

2074
01:23:57,160 --> 01:24:01,320
IN THE WAY OF OUR FOCUSING ON

2075
01:24:01,320 --> 01:24:03,240
THE WHAT WE ALL I THINK ALSO

2076
01:24:03,240 --> 01:24:05,160
BRING FORWARD WHICH IS THE

2077
01:24:05,160 --> 01:24:07,920
SIGNIFICANT AND ONGOING NEEDS OF

2078
01:24:07,920 --> 01:24:11,040
PEOPLE WITH AUTISM ACROSS THE

2079
01:24:11,040 --> 01:24:13,400
SPECTRUM. I'M NOT VOTING FOR

2080
01:24:13,400 --> 01:24:14,840
BEHAVIOR IN THE TITLE, IT

2081
01:24:14,840 --> 01:24:17,400
DOESN'T MATTER TO ME BUT I AM

2082
01:24:17,400 --> 01:24:21,240
MORE REFLECTING ON THIS GENERAL

2083
01:24:21,240 --> 01:24:23,280
THEME WE HAVE OF I THINK

2084
01:24:23,280 --> 01:24:24,240
ATTRIBUTING THINGS TO WORDS THAT

2085
01:24:24,240 --> 01:24:26,480
MAY OR MAY NOT BE THERE.

2086
01:24:26,480 --> 01:24:29,120
>> APPRECIATE THAT
COMMENT. CAN

2087
01:24:29,120 --> 01:24:36,160
TAKE THAT INTO CONSIDERATION. 

2088
01:24:36,160 --> 01:24:38,040
>> I LEE SHAH, I KNOW YOU
HAVE A

2089
01:24:38,040 --> 01:24:42,720
LOT OF WORK IN THIS AREA.

2090
01:24:42,720 --> 01:24:46,400
>> I AGREE WITH MATT.
SECOND

2091
01:24:46,400 --> 01:24:49,720
WHAT DR. STEIGLE SAID

2092
01:24:49,720 --> 01:24:51,720
WHOLEHEARTEDLY. I COME FROM A

2093
01:24:51,720 --> 01:24:53,600
PLACE OF IF IT IS OFFENSIVE TO

2094
01:24:53,600 --> 01:24:55,320
ANYONE THEN WE WANT TO AVOID

2095
01:24:55,320 --> 01:24:59,360
USING IT.  BUT WORDS LIKE

2096
01:24:59,360 --> 01:25:00,280
BEHAVIOR SHOULDN'T BE

2097
01:25:00,280 --> 01:25:03,160
INHERENTLY. THEY ARE NOT. 

2098
01:25:03,160 --> 01:25:05,280
THERE'S NOT THE WORD BEHAVIOR. I

2099
01:25:05,280 --> 01:25:06,720
DON'T THINK PREFERENCE IF WE USE

2100
01:25:06,720 --> 01:25:09,320
THE WORD BGY BEHAVI BEHAVIOR. I

2101
01:25:09,320 --> 01:25:10,440
ALSO THINK WE NEED TO BE MINDFUL

2102
01:25:10,440 --> 01:25:15,800
THAT WHEN WE USE WORDS LIKE

2103
01:25:15,800 --> 01:25:17,400
DIFFERENCES. I AGREE SENSORY

2104
01:25:17,400 --> 01:25:21,920
MOTOR AND COGNITIVE

2105
01:25:21,920 --> 01:25:27,680
COMMUNICATION, WE SHOULD FOCUS

2106
01:25:27,680 --> 01:25:30,320
ON THOSE. DIFFERENTLY, IT'S NOT

2107
01:25:30,320 --> 01:25:33,280
A STRONG OF A WORD AS I WOULD

2108
01:25:33,280 --> 01:25:38,920
USE, TO ME IT DOESN'T PUT FORTH

2109
01:25:38,920 --> 01:25:39,960
URGENCY THAT THIS COMMUNITY

2110
01:25:39,960 --> 01:25:44,640
NEEDS TO HAVE IN TERMS OF

2111
01:25:44,640 --> 01:25:49,040
EXPRESSING URGENCY AND SOME OF

2112
01:25:49,040 --> 01:25:51,400
THE REALLY SITUATIONS THAT ARE

2113
01:25:51,400 --> 01:25:54,680
NOT JUST DIFFERENCES, THEY ARE

2114
01:25:54,680 --> 01:25:56,880
PROFOUND DISABILITY. SO I'M OKAY

2115
01:25:56,880 --> 01:25:58,360
WITH USING THE WORD DIFFERENCES

2116
01:25:58,360 --> 01:26:01,640
BUT I WANT TO MAKE SURE THAT WE

2117
01:26:01,640 --> 01:26:04,800
CONVEY ALL THESE SECTIONS THERE

2118
01:26:04,800 --> 01:26:14,680
IS A SPECTRUM. DIFFERENCES OF

2119
01:26:14,680 --> 01:26:16,560
WHAT WE ARE, WE SHOULD BE MORE

2120
01:26:16,560 --> 01:26:18,560
INCLUSIVE OF LANGUAGE NOT LESS

2121
01:26:18,560 --> 01:26:20,840
INCLUSIVE OF LANGUAGE GIVEN

2122
01:26:20,840 --> 01:26:21,920
HETEROGENEITY ACROSS THE

2123
01:26:21,920 --> 01:26:22,200
SPECTRUM.

2124
01:26:22,200 --> 01:26:23,720
>> THANK YOU FOR THOSE
COMMENTS.

2125
01:26:23,720 --> 01:26:32,960
KEEP THAT IN MIND. STEVEN,

2126
01:26:32,960 --> 01:26:33,320
WRITTEN COMMENT

2127
01:26:33,320 --> 01:26:37,640
>> I HAVE A COMMENT FROM
FROM

2128
01:26:37,640 --> 01:26:39,840
DR. PAUL WONG. FOR ME THE TERM

2129
01:26:39,840 --> 01:26:43,200
IS NEUTRAL. THERE IS A SCIENCE

2130
01:26:43,200 --> 01:26:44,440
CALLED BRAIN AND BEHAVIOR. THERE

2131
01:26:44,440 --> 01:26:46,760
IS A SCIENCE CALLED BRAIN AND

2132
01:26:46,760 --> 01:26:48,400
BEHAVIOR FOUNDATION. SCIENCE

2133
01:26:48,400 --> 01:26:50,240
EXPERIENCE IN THE CATEGORY HUMAN

2134
01:26:50,240 --> 01:26:52,720
COGNITION AND BEHAVIOR. THIS IS

2135
01:26:52,720 --> 01:26:55,240
BRAIN AND COGNITION ARE NEUTRAL

2136
01:26:55,240 --> 01:27:01,320
FOR ME, SO IS THE WORD BEHAVIOR 

2137
01:27:01,320 --> 01:27:03,880
>> PAUL, I RECOGNIZE THAT,
I

2138
01:27:03,880 --> 01:27:06,040
THOUGHT OF THE SAME FOUNDATION

2139
01:27:06,040 --> 01:27:08,840
WHEN THAT CAME UP. SO WE WILL

2140
01:27:08,840 --> 01:27:10,080
GIVE THAT SOME THOUGHT OR MAYBE

2141
01:27:10,080 --> 01:27:13,720
IF WE MADE IT THREE WORDS, IF

2142
01:27:13,720 --> 01:27:15,840
BEHAVIOR WAS ONE OF THREE WORDS

2143
01:27:15,840 --> 01:27:20,560
IT WOULDN'T SOUND AS NEGATIVE TO

2144
01:27:20,560 --> 01:27:22,360
CERTAIN PEOPLE. WE WILL FIGURE

2145
01:27:22,360 --> 01:27:24,360
IT OUT, WE WILL COME UP WITH

2146
01:27:24,360 --> 01:27:25,280
IDEAS AND PITCH THAT THE NEXT

2147
01:27:25,280 --> 01:27:29,440
TIME. SUSAN RIVERA, ANYTHING

2148
01:27:29,440 --> 01:27:30,920
ELSE TO SAY ABOUT THAT?

2149
01:27:30,920 --> 01:27:32,920
>> ONLY THAT I WAS THE ONE
THAT

2150
01:27:32,920 --> 01:27:36,440
MADE THE INITIAL SUGGESTION

2151
01:27:36,440 --> 01:27:39,320
BIOLOGY BEHAVIOR. IT IS

2152
01:27:39,320 --> 01:27:41,240
ABSOLUTELY NEUTRAL TO ME AS WELL

2153
01:27:41,240 --> 01:27:43,920
AS A COGNITIVE SCIENTIST. BUT I

2154
01:27:43,920 --> 01:27:47,080
DO THINK THAT IT IS WORTHYING

2155
01:27:47,080 --> 01:27:49,720
ABOUT WHETHER WE LOSE NOTHING BY

2156
01:27:49,720 --> 01:27:51,120
PUTTING IN OTHER WORDS THAT

2157
01:27:51,120 --> 01:27:54,240
DON'T TRIGGER THAT FOR SOME

2158
01:27:54,240 --> 01:27:56,360
CONSTITUENTS. I'M JUST -- I

2159
01:27:56,360 --> 01:27:57,680
THINK IT IS WORTH BRAINSTORMING.

2160
01:27:57,680 --> 01:27:58,880
I LIKE THE IDEA OF NOT THROWING

2161
01:27:58,880 --> 01:28:01,840
THE BABY OUT WITH THE BATH

2162
01:28:01,840 --> 01:28:03,640
WATER. MAYBE BEHAVIOR CAN BE IN

2163
01:28:03,640 --> 01:28:05,520
THERE. IF WE HAVE A NUMBER OF

2164
01:28:05,520 --> 01:28:06,880
MEMBERS OF OUR IACC COMMITTEE

2165
01:28:06,880 --> 01:28:10,000
WHO ARE SAYING THAT IS TRIGGERS

2166
01:28:10,000 --> 01:28:11,320
A NEGATIVE CONNOTATION FOR THEM,

2167
01:28:11,320 --> 01:28:13,320
IS THERE A WAY THAT WE CAN THINK

2168
01:28:13,320 --> 01:28:14,640
OF OTHER WORDS THAT DO THE SAME

2169
01:28:14,640 --> 01:28:19,400
SERVICE?

2170
01:28:19,400 --> 01:28:21,680
>> WE CAN DO BIOLOGY BRAIN

2171
01:28:21,680 --> 01:28:23,160
BEHAVIOR IF PART OF SERIES OF

2172
01:28:23,160 --> 01:28:24,960
THREE DOESN'T FOCUS ON ANYONE.

2173
01:28:24,960 --> 01:28:26,320
SO I DON'T KNOW WE HAVE TO COME

2174
01:28:26,320 --> 01:28:27,920
UP WITH SOME DIFFERENT ONES BUT

2175
01:28:27,920 --> 01:28:29,040
CONTINUE TO PITCH THINGS IF YOU

2176
01:28:29,040 --> 01:28:32,360
THINK OF ANYTHING FOR THAT.

2177
01:28:32,360 --> 01:28:33,920
DINA.

2178
01:28:33,920 --> 01:28:37,600
>> SUSAN, I WANT TO THANK
YOU.

2179
01:28:37,600 --> 01:28:40,920
PHO BEING SENSITIZED. I NOTICE

2180
01:28:40,920 --> 01:28:43,320
NONE OF THE PEOPLE WHO FIND

2181
01:28:43,320 --> 01:28:44,240
BEHAVIOR NEUTRAL ARE AUTISTIC

2182
01:28:44,240 --> 01:28:47,240
PEOPLE. IF YOU WERE TO TALLY THE

2183
01:28:47,240 --> 01:28:49,360
IACC MEMBERS ON THE SPECTRUM

2184
01:28:49,360 --> 01:28:52,080
BEHAVIOR HAS A LOT OF HISTORICAL

2185
01:28:52,080 --> 01:28:57,160
NEGATIVE CONNOTATIONS FOR US. I

2186
01:28:57,160 --> 01:29:01,560
AGREE WITH ALICE -- ALICIA THAT

2187
01:29:01,560 --> 01:29:03,480
DIFFERENCES IS TOO LOW BALL, I

2188
01:29:03,480 --> 01:29:08,360
HAVE NEVER LIKED SOFT SELLING

2189
01:29:08,360 --> 01:29:10,280
THE LANGUAGE AROUND THESE

2190
01:29:10,280 --> 01:29:12,400
ISSUES. I WOULD ENCOURAGE US TO

2191
01:29:12,400 --> 01:29:15,680
LOOK VERY HONESTLY AT THE WORD

2192
01:29:15,680 --> 01:29:18,840
DISABILITY OR IMPAIRMENT I THINK

2193
01:29:18,840 --> 01:29:20,400
ALSO DEVELOPMENT IS A NEUTRAL

2194
01:29:20,400 --> 01:29:21,640
WORD WITH THAT COVERS THIS AS

2195
01:29:21,640 --> 01:29:29,280
WELL, THAT WAS ACTUALLY JENNY'S

2196
01:29:29,280 --> 01:29:32,400
SUGGESTION. I DON'T THINK IT'S

2197
01:29:32,400 --> 01:29:33,640
MUTUAL WORK FOR THE COMMUNITY IN

2198
01:29:33,640 --> 01:29:34,960
TERMS OF WHAT WE ARE TALKING

2199
01:29:34,960 --> 01:29:36,560
ABOUT BIOLOGY AND PEOPLE BEING

2200
01:29:36,560 --> 01:29:40,080
HARD WIRED.  I DON'T KNOW, I

2201
01:29:40,080 --> 01:29:44,280
HAVE TO SAY THAT STRONGLY. AND

2202
01:29:44,280 --> 01:29:46,400
AGAIN SUSAN, I APPRECIATE YOUR

2203
01:29:46,400 --> 01:29:47,400
BEING SENSITIVE TO THIS.

2204
01:29:47,400 --> 01:29:50,080
APPRECIATE IT VERY MUCH.

2205
01:29:50,080 --> 01:29:52,240
>> SENSORY MOTOR
DEVELOPMENT AND

2206
01:29:52,240 --> 01:29:55,840
COGNITIVE AND COMMUNICATION

2207
01:29:55,840 --> 01:29:57,080
DEVELOPMENT PROBABLY WOULD WORK

2208
01:29:57,080 --> 01:29:58,800
SO THAT SOMETHING WE CAN CHANGE

2209
01:29:58,800 --> 01:30:02,000
THAT TO. I THINK SEX AND GENDER

2210
01:30:02,000 --> 01:30:03,520
DIFFERENCES STILL SOUNDS BETTER,

2211
01:30:03,520 --> 01:30:05,920
I DON'T THINK DEVELOPMENT MAKES

2212
01:30:05,920 --> 01:30:07,320
SENSE THERE. SCOTT, DO YOU HAVE

2213
01:30:07,320 --> 01:30:08,320
A COMMENT?

2214
01:30:08,320 --> 01:30:12,800
>> YEAH, THANKS, SUSAN. SO
I CON

2215
01:30:12,800 --> 01:30:14,360
-- REFER TO DISABILITY,

2216
01:30:14,360 --> 01:30:16,680
OBVIOUSLY AUTISM IS A DISABILITY

2217
01:30:16,680 --> 01:30:18,800
AND SIGNIFICANT DISABILITY AS

2218
01:30:18,800 --> 01:30:20,680
RECOGNIZED UNDER OTHER LAWS TOO

2219
01:30:20,680 --> 01:30:24,720
LIKE REHABILITATION ACT FOR

2220
01:30:24,720 --> 01:30:27,000
INSTANCE AND I DO CONCUR THERE

2221
01:30:27,000 --> 01:30:28,440
MAYBE PLACES FOR INSTANCE TO

2222
01:30:28,440 --> 01:30:30,800
REFER TO LANGUAGE LIKE

2223
01:30:30,800 --> 01:30:34,600
DIFFERENCES BUT FOR INSTANCE

2224
01:30:34,600 --> 01:30:35,320
UNDEFER GOVERNMENT LAWS LIKE

2225
01:30:35,320 --> 01:30:37,000
FEDERAL LAWS STATE LAWS ET

2226
01:30:37,000 --> 01:30:38,480
CETERA, DIFFERENCES COULD MEAN

2227
01:30:38,480 --> 01:30:39,720
EYE COLOR OR ET CETERA THAT

2228
01:30:39,720 --> 01:30:44,560
DOESN'T HAVE THE SAME STANDING

2229
01:30:44,560 --> 01:30:46,600
IN SOCIETY AS FAR AS NEED FOR

2230
01:30:46,600 --> 01:30:48,760
SUPPORT AND SERVICES, AS FAR AS

2231
01:30:48,760 --> 01:30:49,880
DISABILITY. WHEN I THINK OF

2232
01:30:49,880 --> 01:30:53,200
DISABILITY I THINK OF IT FROM

2233
01:30:53,200 --> 01:30:56,120
THE SOCIAL MODEL MORE IN TERMS

2234
01:30:56,120 --> 01:30:58,520
OF THE NOT JUST CHALLENGES

2235
01:30:58,520 --> 01:31:00,080
WITHIN THE PERSON ITSELF ALSO

2236
01:31:00,080 --> 01:31:01,360
BARRIERS WITHIN THEIR ACCESS TO

2237
01:31:01,360 --> 01:31:03,160
SUPPORTS AND SERVICES TO HELP

2238
01:31:03,160 --> 01:31:05,400
THEM THRIVE AND BE EMPOWERED AND

2239
01:31:05,400 --> 01:31:07,200
BE EMPOWEREDDED TO ARE HAVE

2240
01:31:07,200 --> 01:31:08,520
SUCCESS AND HIGH QUALITY OF LIFE

2241
01:31:08,520 --> 01:31:12,840
AND FULLY INCLUDED. I DO THINK

2242
01:31:12,840 --> 01:31:15,640
THAT IT IS IMPORTANT, I THINK I

2243
01:31:15,640 --> 01:31:18,040
WOULD ASSERT AND PERHAPS

2244
01:31:18,040 --> 01:31:20,520
DISAGREE FROM FOLKS THAT THE

2245
01:31:20,520 --> 01:31:22,400
LANGUAGE IS REALLY IMPORTANT FOR

2246
01:31:22,400 --> 01:31:23,440
THE COMMITTEE, IT IS REALLY

2247
01:31:23,440 --> 01:31:25,600
IMPORTANT FOR THE STAKEHOLDERS

2248
01:31:25,600 --> 01:31:26,840
WHO ARE LOOKING AT STRATEGIC

2249
01:31:26,840 --> 01:31:28,760
PLAN WHICH INCLUDES RESEARCHERS

2250
01:31:28,760 --> 01:31:30,760
BUT NOT LIMITED TO RESEARCHERS

2251
01:31:30,760 --> 01:31:34,240
WITH FOLKS IN POLICY, SERVICE

2252
01:31:34,240 --> 01:31:35,600
PROVISION AUTISTIC PEOPLE AND

2253
01:31:35,600 --> 01:31:37,040
FAMILIES. PEOPLE READ THE

2254
01:31:37,040 --> 01:31:38,720
STRATEGIC PLAN AND MAKE USE OF

2255
01:31:38,720 --> 01:31:41,720
IT AND A LOT OF FOLKS FOR

2256
01:31:41,720 --> 01:31:43,720
GOVERNMENT HELPS SHAPE DIRECTION

2257
01:31:43,720 --> 01:31:47,360
OF WHAT IS FOCUSED ON FOR AUTISM

2258
01:31:47,360 --> 01:31:48,360
UNDER THE PRIORITIES OF THE

2259
01:31:48,360 --> 01:31:49,960
OFFICE OF THE CARES ACT. SO I

2260
01:31:49,960 --> 01:31:52,280
WANT TO RE-EMPHASIZE THAT I

2261
01:31:52,280 --> 01:31:55,680
THINK LANGUAGE HAS A MAJOR

2262
01:31:55,680 --> 01:31:57,000
IMPORTANT PLACE AND IT IS

2263
01:31:57,000 --> 01:31:58,160
SOMETHING STAKEHOLDER

2264
01:31:58,160 --> 01:31:59,360
COMMUNITIES CONTINUALLY BRING

2265
01:31:59,360 --> 01:32:01,320
OUT I NOTICE VERY, VERY

2266
01:32:01,320 --> 01:32:04,040
IMPORTANT TO AUTISTIC PEOPLE,

2267
01:32:04,040 --> 01:32:06,240
OUR FAMILIES AND WHEN KIDS THAT

2268
01:32:06,240 --> 01:32:07,600
ARE BIASES ONCE YOU CONSIDER

2269
01:32:07,600 --> 01:32:10,040
BIASES NOT JUST IN TERMS OF HOW

2270
01:32:10,040 --> 01:32:11,480
RESEARCHERS USE THE TERMS BUT

2271
01:32:11,480 --> 01:32:13,280
ALSO WHAT THEY HAVE ACQUIRED

2272
01:32:13,280 --> 01:32:15,400
AMONG SOCIETY THAT IS WHEN I SAY

2273
01:32:15,400 --> 01:32:16,920
THINGS LIKE BEHAVIOR, THERE IS A

2274
01:32:16,920 --> 01:32:21,840
MAJOR HISTORY AS DINA AND OTHER

2275
01:32:21,840 --> 01:32:23,160
MENTIONED, HOW BEHAVIOR AMONG

2276
01:32:23,160 --> 01:32:24,720
THE LAST SEVERAL DECADES AND

2277
01:32:24,720 --> 01:32:29,120
WHAT THAT IS MEANT FOR AUTISTIC

2278
01:32:29,120 --> 01:32:33,280
PEOPLE AND DISTINGUISHING ON

2279
01:32:33,280 --> 01:32:35,080
TYPICAL FORMS OF INTERACTION AND

2280
01:32:35,080 --> 01:32:37,000
WHAT IS THOUGHT OF AS BEHAVIOR

2281
01:32:37,000 --> 01:32:41,200
AT TIMES SO I JUST WOULD BE

2282
01:32:41,200 --> 01:32:42,640
CAREFUL TO ASSUME BECAUSE

2283
01:32:42,640 --> 01:32:44,080
SOMETHING IS PREVALENCE AMONG

2284
01:32:44,080 --> 01:32:44,840
RESEARCH IMMUNITIES WITH.

2285
01:32:44,840 --> 01:32:47,480
SOL OF O THESE TERMS THAT

2286
01:32:47,480 --> 01:32:48,680
DIMINISHES THE EXTENT WHERE

2287
01:32:48,680 --> 01:32:52,240
THERE MAYBE A STIGMA ELEMENTS

2288
01:32:52,240 --> 01:32:55,000
FOR THE TERM AMONG THE COMMUNITY

2289
01:32:55,000 --> 01:32:58,760
THAT IS ALSO THE CASE FOR SOME

2290
01:32:58,760 --> 01:33:00,760
OF THESE OTHER TERMS IN THE

2291
01:33:00,760 --> 01:33:01,840
STRATEGIC PLAN FOR INSTANCE

2292
01:33:01,840 --> 01:33:03,880
WHERE WE CAN CONSIDER WHERE

2293
01:33:03,880 --> 01:33:06,200
WHETHER COULD BE A NEUTRAL

2294
01:33:06,200 --> 01:33:06,960
ELEMENT AS FAR AS FOR INSTANCE

2295
01:33:06,960 --> 01:33:08,400
CHARACTERISTICS AND TRAITS OF

2296
01:33:08,400 --> 01:33:09,560
AUTISM IN THIS SECTION, SOME

2297
01:33:09,560 --> 01:33:13,880
OTHER AREAS INSTEAD OF FOCUSES

2298
01:33:13,880 --> 01:33:17,520
LIKE SIGNS OR SYMPTOMS WHICH

2299
01:33:17,520 --> 01:33:18,880
DEFINITIVELY HAVE ACQUIRED

2300
01:33:18,880 --> 01:33:21,000
DEFINITELY A STIGMA TO THEM AND

2301
01:33:21,000 --> 01:33:24,320
DEFINITELY NON-NEUTRAL. IN POST

2302
01:33:24,320 --> 01:33:28,080
DEFINITELY A NEGATIVE ELEMENT TO

2303
01:33:28,080 --> 01:33:29,880
THEM VERSUS TRAITS AND

2304
01:33:29,880 --> 01:33:30,960
CHARACTERISTICS IS MORE NEUTRAL.

2305
01:33:30,960 --> 01:33:33,320
THERE ARE RESOURCES I COULD SEND

2306
01:33:33,320 --> 01:33:35,320
ALSO SUSAN AS FAR AS ARTICLES

2307
01:33:35,320 --> 01:33:37,440
THAT HAVE COME OUT RECENTLY ON

2308
01:33:37,440 --> 01:33:38,760
STIGMA AND LANGUAGE FOR INSTANCE

2309
01:33:38,760 --> 01:33:42,960
IN THE RESEARCH COMMUNITY, AND

2310
01:33:42,960 --> 01:33:44,640
ADDRESSING THESE AREAS WITH

2311
01:33:44,640 --> 01:33:45,840
LANGUAGE THAT I CAN SHARE THAT

2312
01:33:45,840 --> 01:33:47,240
RECENTLY BEEN PUBLISHED IN THE

2313
01:33:47,240 --> 01:33:49,560
LAST COUPLE OR FEW YEARS HELPFUL

2314
01:33:49,560 --> 01:33:52,280
TO SIGHT.

2315
01:33:52,280 --> 01:33:53,320
>> THANKS SCOTT WE HAVE A
FILE

2316
01:33:53,320 --> 01:33:54,680
GOING ON THOSE, IF YOU HAVE ANY

2317
01:33:54,680 --> 01:33:56,800
ADDITIONAL ONES. WE HAVE TRYING

2318
01:33:56,800 --> 01:33:58,520
TO KEEP TRACK AND WE DID

2319
01:33:58,520 --> 01:34:00,960
ACTUALLY MAKE AN EFFORT TO USE

2320
01:34:00,960 --> 01:34:02,760
WORDS LIKE CHARACTERISTICS AND

2321
01:34:02,760 --> 01:34:04,640
TRAITS THAT ARE MORE NEUTRAL

2322
01:34:04,640 --> 01:34:06,960
THROUGHOUT THE PLAN. WE WILL

2323
01:34:06,960 --> 01:34:08,960
LOOK AT THOSE IN THIS CONTEXT,

2324
01:34:08,960 --> 01:34:10,520
THIS QUESTION IS REALLY A LOT OF

2325
01:34:10,520 --> 01:34:13,040
IT IS BASIC SCIENCE AND SOME OF

2326
01:34:13,040 --> 01:34:14,800
IT IS CELL BASED RESEARCH AND

2327
01:34:14,800 --> 01:34:17,480
SOME OF IT IS IN HUMAN SAY

2328
01:34:17,480 --> 01:34:19,400
SENSORY MOTOR DISABILITIES MIGHT

2329
01:34:19,400 --> 01:34:21,160
NOT MAKE SENSE IF YOU ARE DOING

2330
01:34:21,160 --> 01:34:25,320
A CELL BASED EXPERIMENT BUT

2331
01:34:25,320 --> 01:34:27,760
DEVELOPMENT APPLIES TO BOTH. SO

2332
01:34:27,760 --> 01:34:29,520
WE WILL TAKE THAT INTO

2333
01:34:29,520 --> 01:34:30,120
CONSIDERATION BUT DISABILITY

2334
01:34:30,120 --> 01:34:31,640
COMES UP IN OTHER PARTS OF THE

2335
01:34:31,640 --> 01:34:35,480
PLAN. WE WILL TAKE ANOTHER

2336
01:34:35,480 --> 01:34:36,760
COUPLE OF QUESTIONS AND OTHER

2337
01:34:36,760 --> 01:34:40,520
FEW QUESTIONS THEN TO OUR BREAK.

2338
01:34:40,520 --> 01:34:42,280
THIS DISCUSSION IS HELPFUL AND

2339
01:34:42,280 --> 01:34:44,080
IT IS WHY WE WANTED TO O HAVE

2340
01:34:44,080 --> 01:34:45,600
THIS MEETING SO WE CAN GET THIS

2341
01:34:45,600 --> 01:34:49,600
CONTEXT TO TRY TO OPTIMIZE THE

2342
01:34:49,600 --> 01:34:54,800
PLAN. IVA NOVA.

2343
01:34:54,800 --> 01:34:58,080
>> I JUST WANT TO TELL YOU

2344
01:34:58,080 --> 01:35:00,960
HISTORY, THERE IS LOT OF

2345
01:35:00,960 --> 01:35:04,600
HISTORICAL WORDS, ONE TIME

2346
01:35:04,600 --> 01:35:08,240
NEUTRAL AND WORDS TO TRY TO HELP

2347
01:35:08,240 --> 01:35:11,360
PEOPLE, BACK IN THE 1950s, THE

2348
01:35:11,360 --> 01:35:14,360
WORD MENTAL RETARDATION WAS USED

2349
01:35:14,360 --> 01:35:17,080
TO REPLACE THE WORD FEEBLE

2350
01:35:17,080 --> 01:35:18,200
MINDEDNESS. THEY TRIED TO MAKE

2351
01:35:18,200 --> 01:35:22,160
IT NEUTRAL BUT BECAUSE OF STIGMA

2352
01:35:22,160 --> 01:35:23,920
MAKE IT POLICIES THAT STILL

2353
01:35:23,920 --> 01:35:26,120
EFFECT PEOPLE WITH INTELLECTUAL

2354
01:35:26,120 --> 01:35:27,280
DEVELOPMENTAL DISABILITIES

2355
01:35:27,280 --> 01:35:29,600
TODAY, THESE WORDS ARE NO LONGER

2356
01:35:29,600 --> 01:35:33,280
NEUTRAL. THEY FOLLOW STIGMA AND

2357
01:35:33,280 --> 01:35:34,760
SOMETIMES THE COMMUNITY MEMBERS

2358
01:35:34,760 --> 01:35:38,880
ARE TRIGGERED BY THESE WORDS. SO

2359
01:35:38,880 --> 01:35:43,080
THE WORDS BEHAVIOR THAT COULD BE

2360
01:35:43,080 --> 01:35:45,400
TRIGGERING FOR SELF-ADVOCATES

2361
01:35:45,400 --> 01:35:47,400
BECAUSE WHEN WE HEAR WORD

2362
01:35:47,400 --> 01:35:54,920
BEHAVIOR IT MEANS THE WAY WE --

2363
01:35:54,920 --> 01:35:56,240
PROBLEM BEHAVIOR SO IT IS USED

2364
01:35:56,240 --> 01:35:58,080
IN A WAY THAT IS NEGATIVE AND

2365
01:35:58,080 --> 01:36:01,720
NOT NEUTRAL FOR US. AS AUTISTIC

2366
01:36:01,720 --> 01:36:04,160
PEOPLE. MAY NOT BE USED THAT WAY

2367
01:36:04,160 --> 01:36:05,720
FOR OTHER PEOPLE AND MAYBE

2368
01:36:05,720 --> 01:36:08,480
NEUTRAL FOR OTHER PEOPLE, BUT

2369
01:36:08,480 --> 01:36:11,960
AUTISTIC PEOPLE IT DOESN'T STAY

2370
01:36:11,960 --> 01:36:14,520
NEUTRAL. SO THAT IS WHY IF IT

2371
01:36:14,520 --> 01:36:15,920
DOESN'T HAVE NEUTRAL STATUS

2372
01:36:15,920 --> 01:36:19,440
BECAUSE THE STIGMA THAT THE WORD

2373
01:36:19,440 --> 01:36:21,360
THE SOCIETY HAS ALLOWED TO

2374
01:36:21,360 --> 01:36:25,400
HAPPEN. AND NEGATIVE POLICIES

2375
01:36:25,400 --> 01:36:27,440
FOR AUTISTIC PEOPLE HAVE BEEN

2376
01:36:27,440 --> 01:36:30,680
SEEN IN THE NAME OF THE WORD

2377
01:36:30,680 --> 01:36:32,440
BEHAVIORS LIKE THE WORD SMR WAS

2378
01:36:32,440 --> 01:36:33,840
USED AGAINST PEOPLE WITH

2379
01:36:33,840 --> 01:36:40,120
INTELLECTUAL DISABILITIES. 

2380
01:36:40,120 --> 01:36:42,480
(INAUDIBLE) INSTITUTION AND

2381
01:36:42,480 --> 01:36:45,240
STERILIZE US AGAINST OUR WILL.

2382
01:36:45,240 --> 01:36:46,240
THESE WORDS MAYBE NEUTRAL FOR

2383
01:36:46,240 --> 01:36:48,360
THE PEOPLE BUT NOT FOR US AND

2384
01:36:48,360 --> 01:36:49,800
THEY MAY HAVE HURT US IN THE

2385
01:36:49,800 --> 01:36:52,560
PAST AND HISTORICALLY IN MANY

2386
01:36:52,560 --> 01:36:55,640
WAYS. SO THAT IS MY HISTORICAL

2387
01:36:55,640 --> 01:36:57,280
PERSPECTIVE ON THAT. THANK YOU. 

2388
01:36:57,280 --> 01:36:59,800
>> THANK YOU, IVA NOVA FOR

2389
01:36:59,800 --> 01:37:01,040
SHARING THAT BACKGROUND. WE

2390
01:37:01,040 --> 01:37:03,240
APPRECIATE IT. STEVEN, DO YOU

2391
01:37:03,240 --> 01:37:08,360
HAVE A WRITTEN COMMENT?

2392
01:37:08,360 --> 01:37:10,440
>> TWO COMMENTS ONE FROM
DINA.

2393
01:37:10,440 --> 01:37:12,560
SHE TALKS ABOUT THE HISTORY OF

2394
01:37:12,560 --> 01:37:15,080
BEHAVIOR, THE WORD BEHAVIOR,

2395
01:37:15,080 --> 01:37:17,960
LEADING TO INCARCERATION,

2396
01:37:17,960 --> 01:37:19,520
INSTITUTIONALIZATION AND/OR

2397
01:37:19,520 --> 01:37:24,720
CONVERSION THERAPY FOR LGBTQAI

2398
01:37:24,720 --> 01:37:26,720
INDIVIDUALS. AND THEN ALICIA

2399
01:37:26,720 --> 01:37:28,720
HOLIDAY SAYS SHE IS GOING TO

2400
01:37:28,720 --> 01:37:30,720
MAKE THE SUGGESTION WE ALL BE

2401
01:37:30,720 --> 01:37:32,320
FLEXIBLE WITH LANGUAGE DEPENDING

2402
01:37:32,320 --> 01:37:34,400
ON THE SECTION OF THE STRATEGIC

2403
01:37:34,400 --> 01:37:36,440
PLAN, THERE IS NOTHING

2404
01:37:36,440 --> 01:37:37,960
STIGMATIZING ABOUT THE WORD

2405
01:37:37,960 --> 01:37:39,640
BEHAVIOR IN QUESTION NUMBER 2.

2406
01:37:39,640 --> 01:37:42,760
>> THANK YOU FOR THOSE
COMMENTS.

2407
01:37:42,760 --> 01:37:45,240
I KNOW THAT JOE PIVEN IS LOGGED

2408
01:37:45,240 --> 01:37:46,520
ON, I DON'T KNOW JOE IF YOU ARE

2409
01:37:46,520 --> 01:37:48,320
IN A POSITION TO TALK AT ALL BUT

2410
01:37:48,320 --> 01:37:49,800
I KNOW YOU WORK IN THIS AREA OF

2411
01:37:49,800 --> 01:37:51,360
BIOLOGY AND I HAVEN'T HEARD FROM

2412
01:37:51,360 --> 01:37:52,920
YOU SO WANTED TO GIVE YOU A

2413
01:37:52,920 --> 01:37:54,960
CHANCE IF YOU WANT TO SAY

2414
01:37:54,960 --> 01:37:55,240
ANYTHING?

2415
01:37:55,240 --> 01:37:56,560
>> CAN YOU HEAR ME?

2416
01:37:56,560 --> 01:37:59,520
>> YES I CAN HEAR YOU.

2417
01:37:59,520 --> 01:38:01,160
>> I DON'T KNOW THAT I CAN
SAY

2418
01:38:01,160 --> 01:38:02,480
ANYTHING CONSTRUCTIVE HERE. I

2419
01:38:02,480 --> 01:38:05,800
TEND TO THINK MAYBE MORE

2420
01:38:05,800 --> 01:38:07,400
FUNDAMENTALLY WHAT WE ARE TRYING

2421
01:38:07,400 --> 01:38:10,280
TO ACCOMPLISH WITH THIS TOPIC

2422
01:38:10,280 --> 01:38:15,000
AREA. I THINK ABOUT MECHANISMS

2423
01:38:15,000 --> 01:38:18,480
AND ETIOLOGY AND THOSE KINDS OF

2424
01:38:18,480 --> 01:38:21,160
TERMS. THEY HAVEN'T COME UP IN

2425
01:38:21,160 --> 01:38:27,120
THE CONVERSATION SO NOT SURE --

2426
01:38:27,120 --> 01:38:30,640
SOMETHING IN THE TITLE BIOLOGY. 

2427
01:38:30,640 --> 01:38:32,120
I THINK THE MAIN POINT WOULD BE

2428
01:38:32,120 --> 01:38:34,960
TO STEP BACK AND SAY WHAT ARE WE

2429
01:38:34,960 --> 01:38:39,200
TRYING TO ACCOMPLISH WITH THIS

2430
01:38:39,200 --> 01:38:41,560
-- (INAUDIBLE) RESEARCH.

2431
01:38:41,560 --> 01:38:44,320
>> DID YOU SEE ANYTHING --
ARE

2432
01:38:44,320 --> 01:38:47,640
THERE ANY MAJOR TOPICS OR SHIFTS

2433
01:38:47,640 --> 01:38:49,000
IN THE FIELD THAT YOU WOULD LIKE

2434
01:38:49,000 --> 01:38:51,880
TO SEE IN THIS SECTION THAT WE

2435
01:38:51,880 --> 01:38:53,480
HAVEN'T TALKED ABOUT ALREADY IN

2436
01:38:53,480 --> 01:38:54,680
THIS CONVERSATION OR THAT IS NOT

2437
01:38:54,680 --> 01:38:59,520
ON THE SLIDE? ANYTHING FROM YOUR

2438
01:38:59,520 --> 01:39:00,560
EXPERIENCE NEEDS TO BE SAID THAT

2439
01:39:00,560 --> 01:39:03,680
MIGHT NOT HAVE BEEN PICKED UP IN

2440
01:39:03,680 --> 01:39:06,720
2017?

2441
01:39:06,720 --> 01:39:08,920
>> PROBABLY WANT TO THINK
ABOUT

2442
01:39:08,920 --> 01:39:11,640
IT LONGER TO ANSWER THAT

2443
01:39:11,640 --> 01:39:15,080
QUESTION. MORE THOUGHTFULLY BUT

2444
01:39:15,080 --> 01:39:17,640
MY FIRST IMPRESSION IS THAT THIS

2445
01:39:17,640 --> 01:39:19,440
IS SEEMS ADEQUATE. 

2446
01:39:19,440 --> 01:39:21,280
>> WE DO HAVE THAT SURVEY
THAT

2447
01:39:21,280 --> 01:39:22,960
WE ARE GOING TO SEND OUT AND

2448
01:39:22,960 --> 01:39:24,320
Y'ALL WILL HAVE A CHANCE TO

2449
01:39:24,320 --> 01:39:26,440
REFLECT ON THE WRITTEN DOCUMENTS

2450
01:39:26,440 --> 01:39:28,320
AS WEL WELL. SO IF YOU WANT TO E

2451
01:39:28,320 --> 01:39:30,320
MORE TIME, I WANT TO MAKE SURE

2452
01:39:30,320 --> 01:39:31,280
EVERYONE HAD AN OPPORTUNITY. SO

2453
01:39:31,280 --> 01:39:33,800
EVERYONE IS DOING A GREAT JOB OF

2454
01:39:33,800 --> 01:39:35,080
KEEPING YOUR COMMENTS BRIEF AND

2455
01:39:35,080 --> 01:39:36,720
PASSING THE BATON. SO WE ARE

2456
01:39:36,720 --> 01:39:41,360
DOING WELL ON TIME. READY TO GO

2457
01:39:41,360 --> 01:39:42,760
TO BREAK. WE CAN HAVE A FEW

2458
01:39:42,760 --> 01:39:44,800
EXTRA MINUTES SO IF WE WANT TO

2459
01:39:44,800 --> 01:39:46,280
COME BACK AT THREE O'CLOCK WE

2460
01:39:46,280 --> 01:39:49,880
CAN PICK UP ON QUESTION 3. GOOD

2461
01:39:49,880 --> 01:39:51,920
JOB EVERYONE. THIS HAS BEEN

2462
01:39:51,920 --> 01:39:54,040
SUPER HELPFUL IN TERMS OF TALL

2463
01:39:54,040 --> 01:39:55,560
DIFFERENT PERSPECTIVES YOU HAVE

2464
01:39:55,560 --> 01:39:57,240
SHARED AND LOOK FORWARD TO

2465
01:39:57,240 --> 01:39:59,640
CONTINUING IN A FEW MINUTES.

2466
01:39:59,640 --> 01:40:01,240
TAKE YOUR WELL EARNED BREAK.

2467
01:40:01,240 --> 01:40:05,280
THANK YOU.

2468
01:40:05,280 --> 01:40:07,320
>>WELCOME BACK, IT'S
THREE

2469
01:40:07,320 --> 01:40:08,800
O'CLOCK. TIME TO START THE NEXT

2470
01:40:08,800 --> 01:40:14,720
SESSION OF TODAY'S MEETING.  WE

2471
01:40:14,720 --> 01:40:16,640
WILL BE TALKING ABOUT QUESTION

2472
01:40:16,640 --> 01:40:17,760
THREE OF THE STRATEGIC PLAN

2473
01:40:17,760 --> 01:40:19,280
WHICH IS ON GENETIC AND

2474
01:40:19,280 --> 01:40:23,720
ENVIRONMENTAL FACTORS. THE

2475
01:40:23,720 --> 01:40:24,800
PROPOSED QUESTION 3 TEXT, WHAT

2476
01:40:24,800 --> 01:40:26,640
ARE GENETIC ENVIRONMENTAL

2477
01:40:26,640 --> 01:40:27,200
FACTORS THAT CONTRIBUTE TO

2478
01:40:27,200 --> 01:40:37,720
AUTISM? SO THE TOPICS THAT ARE

2479
01:40:38,480 --> 01:40:40,120
INCLUDED WITHIN THIS QUESTION

2480
01:40:40,120 --> 01:40:42,800
ARE GENETIC FACTORS,

2481
01:40:42,800 --> 01:40:46,360
ENVIRONMENTAL FACTORS, GENE

2482
01:40:46,360 --> 01:40:46,960
ENVIRONMENT SWEAR ACTIONS AND

2483
01:40:46,960 --> 01:40:50,960
EPIGENETICS. STUDIES IN DIVERSE

2484
01:40:50,960 --> 01:40:52,680
POPULATIONS. RESOURCES TO

2485
01:40:52,680 --> 01:40:54,120
ACCELERATE RESEARCH ON GENETIC

2486
01:40:54,120 --> 01:40:56,760
ENVIRONMENTAL FACTORS.  AND

2487
01:40:56,760 --> 01:40:58,320
POLICY AND ETHICAL IMPLICATIONS

2488
01:40:58,320 --> 01:40:59,720
OF ADVANCES IN GENETIC AND

2489
01:40:59,720 --> 01:41:04,600
ENVIRONMENTAL SCIENCE. AS A NOTE

2490
01:41:04,600 --> 01:41:07,440
ON THIS TOPIC WE DID HEAR FROM

2491
01:41:07,440 --> 01:41:10,920
RFI AND MEMBERS OF THE COMMITTEE

2492
01:41:10,920 --> 01:41:12,640
THE IMPORTANT OF OTHER ASPECTS

2493
01:41:12,640 --> 01:41:15,080
OF THE EXPERIENCE OF PEOPLE ON

2494
01:41:15,080 --> 01:41:17,200
THE AUTISM SPECTRUM AND MORE

2495
01:41:17,200 --> 01:41:18,520
TOUCHES ON SOCIAL DETERMINANTS

2496
01:41:18,520 --> 01:41:21,360
OF HEALTH AND TOPICS LIKE THAT.

2497
01:41:21,360 --> 01:41:22,960
T AND OUR TEAM LOOKED TO TRY TO

2498
01:41:22,960 --> 01:41:23,960
INCORPORATE THAT HERE BUT IT

2499
01:41:23,960 --> 01:41:25,760
DIDN'T REALLY MIX THAT WELL WITH

2500
01:41:25,760 --> 01:41:29,160
THESE TOPICS AND SO WE PUT THAT

2501
01:41:29,160 --> 01:41:30,600
INTO QUESTION 6 ESPECIALLY

2502
01:41:30,600 --> 01:41:33,400
SOCIAL SCIENCES RESEARCH TYPES

2503
01:41:33,400 --> 01:41:36,240
OF TOPICS. DIDN'T WANT YOU TO

2504
01:41:36,240 --> 01:41:37,880
THINK THAT HAD BEEN MISSED BUT

2505
01:41:37,880 --> 01:41:40,520
WE KEPT IT IN A SEPARATE PLACE. 

2506
01:41:40,520 --> 01:41:43,040
WE KEPT THIS ONE STILL FOCUSED

2507
01:41:43,040 --> 01:41:45,760
ON A LITTLE MORE OF THE

2508
01:41:45,760 --> 01:41:52,160
BIOLOGICAL ASPECT OF AUTISM TO

2509
01:41:52,160 --> 01:41:53,920
TRY NOT TO MIX IT UP WHEN WE USE

2510
01:41:53,920 --> 01:41:55,400
THE QUESTION TO TRACK RESEARCH

2511
01:41:55,400 --> 01:41:57,760
FOR PORTFOLIO ANALYSIS BUT OUR

2512
01:41:57,760 --> 01:41:58,880
LOOKING FORWARD TO HEARING FROM

2513
01:41:58,880 --> 01:42:00,720
YOU ABOUT WHAT YOUR THOUGHTS AND

2514
01:42:00,720 --> 01:42:03,160
OPINIONS ARE ABOUT THIS. SO I

2515
01:42:03,160 --> 01:42:04,600
WILL USE THE SAME TWO DISCUSSION

2516
01:42:04,600 --> 01:42:06,280
QUESTIONS, ARE THERE ANY OTHER

2517
01:42:06,280 --> 01:42:07,760
IMPORTANT TOPICS OR POINTS WE

2518
01:42:07,760 --> 01:42:09,320
NEED TO INCLUDE OR POINTS THAT

2519
01:42:09,320 --> 01:42:13,640
HAVE TO DO WITH THESE DIFFERENT

2520
01:42:13,640 --> 01:42:17,000
TOPICS MENTIONED HERE. AND HAVE

2521
01:42:17,000 --> 01:42:17,720
THERE BEEN SIGNIFICANT CHANGES

2522
01:42:17,720 --> 01:42:21,960
IN THE FIELD THAT IMPACT THE

2523
01:42:21,960 --> 01:42:22,920
DIRECTION WE SHOULD TAKE IN THE

2524
01:42:22,920 --> 01:42:23,960
STRATEGIC PLAN. OPEN THIS UP TO

2525
01:42:23,960 --> 01:42:34,160
COMMENTS. 

2526
01:42:37,600 --> 01:42:40,960
>> HI, SUSAN, HI,
EVERYONE. JUST

2527
01:42:40,960 --> 01:42:42,400
WANTED TO ASK TO THE POINT YOU

2528
01:42:42,400 --> 01:42:48,120
WERE DESCRIBING ABOUT THE SOCIAL

2529
01:42:48,120 --> 01:42:50,160
DETRIMENTS OF HEALTH, IS THE

2530
01:42:50,160 --> 01:42:52,400
PLAN TO BRIEFLY EXPLAIN THAT IN

2531
01:42:52,400 --> 01:42:54,160
THIS SECTION? I HAVEN'T HAD A

2532
01:42:54,160 --> 01:42:57,080
CHANCE TO REVIEW BUT WONDERING

2533
01:42:57,080 --> 01:43:01,360
IF PEOPLE SEE STUDIES IN DIVERSE

2534
01:43:01,360 --> 01:43:03,680
POPULATIONS IF THAT MIGHT I

2535
01:43:03,680 --> 01:43:05,040
DON'T WANT TO USE THE WORD

2536
01:43:05,040 --> 01:43:06,720
TRIGGER BUT MAKE PEOPLE THINK TO

2537
01:43:06,720 --> 01:43:07,960
THAT? WE HAVE SOME DISCUSSION

2538
01:43:07,960 --> 01:43:10,040
ABOUT THAT EARLY ON. AND I THINK

2539
01:43:10,040 --> 01:43:12,480
IT MIGHT BE HELPFUL IF YOU

2540
01:43:12,480 --> 01:43:13,640
HAVEN'T THOUGHT ABOUT THAT BE

2541
01:43:13,640 --> 01:43:14,680
CURIOUS TO KNOW WHAT OTHERS

2542
01:43:14,680 --> 01:43:18,120
THINK ABOUT INCLUDING JUST A

2543
01:43:18,120 --> 01:43:20,120
BRIEF SENTENCE OR TWO ABOUT WHY

2544
01:43:20,120 --> 01:43:22,040
-- WE PLAN TO ADDRESS THIS BUT

2545
01:43:22,040 --> 01:43:23,280
THIS IS WHY WE PLAN TO ADDRESS

2546
01:43:23,280 --> 01:43:25,840
IT WITH REGARD TO QUESTION

2547
01:43:25,840 --> 01:43:27,480
NUMBER 6 VERSUS HERE.

2548
01:43:27,480 --> 01:43:28,960
>> IT IS POSSIBLE. WE WILL
SEE

2549
01:43:28,960 --> 01:43:32,080
HOW IT PLAYS OUT IN THE PLAN. IT

2550
01:43:32,080 --> 01:43:34,040
MAY NOT NEED EXPLANATION BECAUSE

2551
01:43:34,040 --> 01:43:35,520
PEOPLE SEE THE ENTIRE STRUCTURE

2552
01:43:35,520 --> 01:43:36,880
OF THE PLAN THEY WILL FIGURE

2553
01:43:36,880 --> 01:43:38,560
THAT OUT THEMSELVES BUT IF

2554
01:43:38,560 --> 01:43:39,920
NEEDED WE COULD ALWAYS REFERENCE

2555
01:43:39,920 --> 01:43:41,160
IT BUT IT WAS NEVER PART OF THIS

2556
01:43:41,160 --> 01:43:42,720
CHAPTER SO PEOPLE WON'T BE

2557
01:43:42,720 --> 01:43:44,600
EXPECTING TO SEE IT THERE

2558
01:43:44,600 --> 01:43:46,760
NECESSARILY. WE DO -- DID WANT

2559
01:43:46,760 --> 01:43:49,720
TO MAKE SURE WE SAID SOMETHING

2560
01:43:49,720 --> 01:43:51,200
ABOUT SOCIAL SCIENCES RESEARCH

2561
01:43:51,200 --> 01:43:52,560
BECAUSE I THINK IN PREVIOUS

2562
01:43:52,560 --> 01:43:54,240
PLANS THAT REALLY HASN'T COME UP

2563
01:43:54,240 --> 01:43:56,680
AND I KNOW WE HAVE SOME SOCIAL

2564
01:43:56,680 --> 01:43:59,000
SCIENCE RESEARCHERS ON THE

2565
01:43:59,000 --> 01:44:01,680
COMMITTEE WHO CONTRIBUTED TO

2566
01:44:01,680 --> 01:44:03,120
COMMENTS. WANTED YOU TO KNOW WE

2567
01:44:03,120 --> 01:44:06,120
DID TAKE THAT INTO ACCOUNT.

2568
01:44:06,120 --> 01:44:07,320
>> THANK YOU FOR THAT.

2569
01:44:07,320 --> 01:44:11,520
>> ELAINE, DO YOU HAVE A

2570
01:44:11,520 --> 01:44:12,040
COMMENT?

2571
01:44:12,040 --> 01:44:14,760
>> YES, THANK YOU. I
SKIMMED

2572
01:44:14,760 --> 01:44:18,600
LIKE SUPER FAST SO WHAT I DID

2573
01:44:18,600 --> 01:44:21,000
NOTICE IN I'M NOT SURE IF YOU

2574
01:44:21,000 --> 01:44:25,240
WANT TO THINK ABOUT THIS, BUT IN

2575
01:44:25,240 --> 01:44:27,160
ADDITION TO THE WAY IT IS

2576
01:44:27,160 --> 01:44:29,200
WRITTEN NOW, SKIMMED VERY

2577
01:44:29,200 --> 01:44:31,760
QUICKLY, ABOUT HOW ENVIRONMENTAL

2578
01:44:31,760 --> 01:44:35,600
GENETIC FACTORS INFLUENCE

2579
01:44:35,600 --> 01:44:37,320
DEVELOPMENT OF AUTISM ALTHOUGH

2580
01:44:37,320 --> 01:44:39,840
YOUR OBJECTIVE TO YOU SAY

2581
01:44:39,840 --> 01:44:41,960
DEVELOPMENT AND PROGRESSION, SO

2582
01:44:41,960 --> 01:44:43,280
I'M THINKING ABOUT THIS COMING

2583
01:44:43,280 --> 01:44:45,600
FROM A REGULATORY AGENCY, SO

2584
01:44:45,600 --> 01:44:50,560
FROM A POLICY PERSPECTIVE AND

2585
01:44:50,560 --> 01:44:51,800
THE AUTHORITY THAT WE HAVE

2586
01:44:51,800 --> 01:44:55,240
WHETHER OR NOT IT IS APPROPRIATE

2587
01:44:55,240 --> 01:44:59,640
TO ADD SOME LANGUAGE OR THINKING

2588
01:44:59,640 --> 01:45:05,280
ABOUT A ASDS SENSITIVE

2589
01:45:05,280 --> 01:45:08,320
VULNERABLE AS BEING SENSITIVE

2590
01:45:08,320 --> 01:45:10,760
VULNERABLE INDIVIDUALS TO

2591
01:45:10,760 --> 01:45:12,200
ENVIRONMENTAL FACTORS FOR

2592
01:45:12,200 --> 01:45:14,240
EXAMPLE CHEMICAL EXPOSURES AND I

2593
01:45:14,240 --> 01:45:16,800
APPRECIATE YOU CALLING OUT LIKE

2594
01:45:16,800 --> 01:45:19,360
RESEARCH ON MICROBIOME AND SO

2595
01:45:19,360 --> 01:45:20,800
DIFFERENCES IN MICROBIOME COULD

2596
01:45:20,800 --> 01:45:23,920
BE CONFERRING SENSITIVITY TO

2597
01:45:23,920 --> 01:45:26,680
PARTICULAR ENVIRONMENTAL FACTORS

2598
01:45:26,680 --> 01:45:30,720
AND I THINK THIS RESEARCH IS

2599
01:45:30,720 --> 01:45:34,440
INCREDIBLY NASCENT RESEARCH.

2600
01:45:34,440 --> 01:45:36,400
CERTAINLY THERE ARE SIGNAL AND

2601
01:45:36,400 --> 01:45:38,400
YOU DO CALL OUT THE USE OF MODEL

2602
01:45:38,400 --> 01:45:42,280
SYSTEMS AND I THINK THAT IS

2603
01:45:42,280 --> 01:45:44,760
PARTICULARLY WHERE SOME OF THE

2604
01:45:44,760 --> 01:45:46,280
KINDS OF SENSITIVITY

2605
01:45:46,280 --> 01:45:47,920
VULNERABILITIES MIGHT BE

2606
01:45:47,920 --> 01:45:51,160
TESTABLE OR AT LEAST BE ABLE TO

2607
01:45:51,160 --> 01:45:54,240
DEVELOP TESTABLE HYPOTHESES,

2608
01:45:54,240 --> 01:45:56,320
USING THOSE SYSTEMS. BUT THAT

2609
01:45:56,320 --> 01:45:58,280
WOULD MAKE BY HAVING IT IN THERE

2610
01:45:58,280 --> 01:46:01,400
WE WOULD BE MAKING SURE THAT

2611
01:46:01,400 --> 01:46:04,080
WHEN WE ARE DOING THE POLICY AND

2612
01:46:04,080 --> 01:46:06,400
THE DEVELOPMENTAL REGULATIONS

2613
01:46:06,400 --> 01:46:08,080
AND THINGS AND DOING CHEMICAL

2614
01:46:08,080 --> 01:46:09,880
RISK ASSESSMENTS AND THINGS WE

2615
01:46:09,880 --> 01:46:13,960
ARE MAKING SURE ASD IS

2616
01:46:13,960 --> 01:46:16,720
CONSIDERED A VULNERABILITY

2617
01:46:16,720 --> 01:46:19,440
FACTOR AND WE ARE ABLE TO DO

2618
01:46:19,440 --> 01:46:23,880
THOSE ANALYSES. SO THIS THEN

2619
01:46:23,880 --> 01:46:25,880
STILL HAVE ONE FINAL KIND OF

2620
01:46:25,880 --> 01:46:28,200
OVERARCHING THING WHICH WILL

2621
01:46:28,200 --> 01:46:31,000
COME UP AGAIN MORE ON THE LIFE

2622
01:46:31,000 --> 01:46:32,400
STAGE PROBABLY OVER AND OVER BUT

2623
01:46:32,400 --> 01:46:35,240
IN TERMS OF WHEN COHORT STUDIES

2624
01:46:35,240 --> 01:46:37,720
ARE BEING DESIGNED TO IMPLEMENT

2625
01:46:37,720 --> 01:46:42,240
REALLY CALLING OUT THE NEED TO

2626
01:46:42,240 --> 01:46:45,040
OVERSAMPLE FOR ASD SO WE ARE NOT

2627
01:46:45,040 --> 01:46:46,480
ASSERTING ONLY DOING -- ONLY

2628
01:46:46,480 --> 01:46:50,120
CONSIDERING ASD IN SPECIFIC

2629
01:46:50,120 --> 01:46:51,280
STUDIES, OF THOSE INDIVIDUALS

2630
01:46:51,280 --> 01:46:54,000
AND POPULATIONS BUT THAT WERE

2631
01:46:54,000 --> 01:46:56,680
ALWAYS OVERSAMPLING FOR THAT

2632
01:46:56,680 --> 01:46:58,760
GROUP IN OTHER COHORT STUDIES

2633
01:46:58,760 --> 01:47:00,040
WHERE WE ARE LOOKING AT

2634
01:47:00,040 --> 01:47:04,560
ENVIRONMENTAL FACTORS OR OTHER

2635
01:47:04,560 --> 01:47:10,400
KINDS OF HEALTH RELATED AND -- A

2636
01:47:10,400 --> 01:47:12,000
LOT OF THE GOVERNMENT LEAD

2637
01:47:12,000 --> 01:47:14,480
SURVEYS AND LONGITUDINAL COHORT

2638
01:47:14,480 --> 01:47:15,840
STUDIES. THAT WAS THAT.

2639
01:47:15,840 --> 01:47:18,680
>> GREAT. THANK YOU,
ELAINE.

2640
01:47:18,680 --> 01:47:20,360
SOMETHING I DIDN'T MENTION ON

2641
01:47:20,360 --> 01:47:21,560
THE SLIDE IT IS NOT ON THE SLIDE

2642
01:47:21,560 --> 01:47:24,360
BUT WE DID ADD CO-OCCURRING

2643
01:47:24,360 --> 01:47:25,320
CONDITIONS INTO THIS AS WELL,

2644
01:47:25,320 --> 01:47:27,400
THAT WAS NOT IN THE PREVIOUS

2645
01:47:27,400 --> 01:47:30,560
PLAN IN THIS SECTION BUT WE DID

2646
01:47:30,560 --> 01:47:32,120
HEAR FROM MEMBERS AND MEMBERS OF

2647
01:47:32,120 --> 01:47:35,360
THE PUBLIC ABOUT THE IMPORTANCE

2648
01:47:35,360 --> 01:47:36,920
OF MAYBE THESE FACTORS AND HOW

2649
01:47:36,920 --> 01:47:38,240
THEY MIGHT INFLUENCE

2650
01:47:38,240 --> 01:47:39,800
CO-OCCURRING CONDITIONS WITH

2651
01:47:39,800 --> 01:47:42,640
AUTISM SO THAT HAS BEEN

2652
01:47:42,640 --> 01:47:43,280
INCORPORATED. .

2653
01:47:43,280 --> 01:47:45,240
WE DID MENTION SOMETHING ABOUT

2654
01:47:45,240 --> 01:47:46,640
VULNERABILITY BUT IF YOU HAVE

2655
01:47:46,640 --> 01:47:47,680
SPECIFIC REFERENCES ELAINE THAT

2656
01:47:47,680 --> 01:47:50,000
YOU MIGHT WANT TO SEND US WE

2657
01:47:50,000 --> 01:47:51,080
COULD ELABORATE IT A LITTLE BIT

2658
01:47:51,080 --> 01:47:52,560
MORE.

2659
01:47:52,560 --> 01:47:53,880
>> SURE.

2660
01:47:53,880 --> 01:47:56,520
OPERATOR:  GRE

2661
01:47:56,520 --> 01:47:58,320
>> GREAT. I THOUGHT I SAW
MORE

2662
01:47:58,320 --> 01:47:59,360
HANDS RAIDED BUT I DON'T SEE ANY

2663
01:47:59,360 --> 01:48:04,760
NOW. -- RAISED BUT DON'T SEE ANY

2664
01:48:04,760 --> 01:48:06,000
NOW. ANY COMMENTS, SCOTT?

2665
01:48:06,000 --> 01:48:08,640
>> THANKS, SUSAN. I KNOW
THIS IS

2666
01:48:08,640 --> 01:48:11,760
BEYOND THE NEW ELEMENTS ASPECT

2667
01:48:11,760 --> 01:48:14,320
BUT AGAIN IT IS A LANGUAGE AGAIN

2668
01:48:14,320 --> 01:48:15,520
SINCE FOLKS NON-RESEARCHERS

2669
01:48:15,520 --> 01:48:18,200
SOMETIMES MAY READ THE PLAN, IS

2670
01:48:18,200 --> 01:48:19,560
THERE ANY WAY TO CONSIDER

2671
01:48:19,560 --> 01:48:21,360
SOMETHING LIKE GENETIC AND

2672
01:48:21,360 --> 01:48:22,720
NON-GENETIC OR SOMETHING LIKE

2673
01:48:22,720 --> 01:48:25,440
THAT? BECAUSE I KNOW AMONG A LOT

2674
01:48:25,440 --> 01:48:28,240
OF SCIENTISTS ESPECIALLY

2675
01:48:28,240 --> 01:48:29,920
PHYSICAL SCIENTISTS SOMETIMES

2676
01:48:29,920 --> 01:48:32,400
MORE SO THAN SOCIAL SCIENTISTS

2677
01:48:32,400 --> 01:48:34,200
USING THE TERM ENVIRONMENT HAD

2678
01:48:34,200 --> 01:48:36,200
BEEN PRETTY COMMON FOR MANY,

2679
01:48:36,200 --> 01:48:37,920
MANY DECADES, WE ARE AWARE OF

2680
01:48:37,920 --> 01:48:41,120
THAT, THAT THAT IS WHAT THEY USE

2681
01:48:41,120 --> 01:48:43,880
TO ACCOMPANY GENETIC BUT AMONG

2682
01:48:43,880 --> 01:48:45,360
THE GENERAL POPULATION AND

2683
01:48:45,360 --> 01:48:49,400
SOCIETY POLICY MAKERS, SERVICE

2684
01:48:49,400 --> 01:48:51,000
PROVIDERS, EVEN MAYBE SOME

2685
01:48:51,000 --> 01:48:52,040
SLEIGHTS OF RESEARCHERS HEARING

2686
01:48:52,040 --> 01:48:53,200
THE WORD ENVIRONMENT OR READ IT

2687
01:48:53,200 --> 01:48:55,200
THEY THINK OF MORE OF THE

2688
01:48:55,200 --> 01:48:58,960
PHYSICAL SPACE AND DON'T REALIZE

2689
01:48:58,960 --> 01:49:00,080
ENVIRONMENT IS ANYTHING

2690
01:49:00,080 --> 01:49:01,640
NON-GENETIC BASICALLY, IT COULD

2691
01:49:01,640 --> 01:49:07,240
BE OTHER THINGS AS FAR AS THE --

2692
01:49:07,240 --> 01:49:09,360
THAT RELATE TO HOW HUMAN

2693
01:49:09,360 --> 01:49:10,280
DEVELOPMENT TAKES PLACE THE

2694
01:49:10,280 --> 01:49:15,480
PERSON'S GENETICS ITSELF.  THAT

2695
01:49:15,480 --> 01:49:16,600
THAT IS SOMETHING THAT MIGHT BE

2696
01:49:16,600 --> 01:49:17,560
HELPFUL FOR FOLKS UNDERSTANDING

2697
01:49:17,560 --> 01:49:19,200
THE CONTEXT OF THAT, THE

2698
01:49:19,200 --> 01:49:22,360
ENVIRONMENT IS REFERRING TO THE

2699
01:49:22,360 --> 01:49:24,920
NON-GENETIC ELEMENTS IN TERMS OF

2700
01:49:24,920 --> 01:49:26,720
WHAT THAT LOOKS LIKE FOR HUMAN

2701
01:49:26,720 --> 01:49:30,080
DEVELOPMENT LIVED EXPERIENCE

2702
01:49:30,080 --> 01:49:31,520
UPBRINGING, AS YOU DEVELOP FOR

2703
01:49:31,520 --> 01:49:33,400
CHILDHOOD AND ADOLESCENTS LIKE

2704
01:49:33,400 --> 01:49:37,400
INTO ADULT LIF LIFE. JUST THOUGT

2705
01:49:37,400 --> 01:49:38,320
THAT WOULD BE HELPFUL AS FAR AS

2706
01:49:38,320 --> 01:49:42,000
LANGUAGE. IF YOU DON'T WANT TO

2707
01:49:42,000 --> 01:49:43,480
FOR INSTANCE CHANGE IT, AT LEAST

2708
01:49:43,480 --> 01:49:46,000
SOME CLARITY TO MAKE SURE EXTRA

2709
01:49:46,000 --> 01:49:47,120
CONTEXT MIGHT BE HELPFUL THERE

2710
01:49:47,120 --> 01:49:48,120
SO FOLKS HAVE THAT FULL

2711
01:49:48,120 --> 01:49:49,160
UNDERSTANDING WE ARE NOT JUST

2712
01:49:49,160 --> 01:49:52,000
TALKING ABOUT JUST A PHYSICAL

2713
01:49:52,000 --> 01:49:54,480
SPACE, IT IS A LOT BROADER THAN

2714
01:49:54,480 --> 01:49:58,640
THATHAT AS FAR AS THE NON-GENETC

2715
01:49:58,640 --> 01:50:01,440
FACTORS THAT SHAPE THE HUMAN

2716
01:50:01,440 --> 01:50:02,920
DEVELOPMENT WHAT THAT LOOKS LIKE

2717
01:50:02,920 --> 01:50:05,680
FOR AUTISTIC PEOPLE AND THE

2718
01:50:05,680 --> 01:50:07,480
CO-OCCURRING CONDITIONS WE MAY

2719
01:50:07,480 --> 01:50:10,000
EXPERIENCE. THEN I DO LIKE HOW

2720
01:50:10,000 --> 01:50:11,920
YOU HAVE THE DIVERSE POPULATIONS

2721
01:50:11,920 --> 01:50:13,720
ELEMENT. THE MORE WE CAN STRETCH

2722
01:50:13,720 --> 01:50:16,120
THAT THE BETTER. WE HAVE A

2723
01:50:16,120 --> 01:50:19,840
HISTORY AT TIMES THAT THE

2724
01:50:19,840 --> 01:50:21,160
STUDIES HAVE NOT OFTEN. THERE IS

2725
01:50:21,160 --> 01:50:22,960
A LOT OF ISSUES WITH GETTING

2726
01:50:22,960 --> 01:50:25,080
DIVERSE SAMPLE AND RESEARCH

2727
01:50:25,080 --> 01:50:26,760
STUDIES, I'M WELL AWARE OF THAT

2728
01:50:26,760 --> 01:50:30,040
BUT IT IS SOMETHING THAT I THINK

2729
01:50:30,040 --> 01:50:32,600
WE NEED A MAJOR PRIORITY ON IS

2730
01:50:32,600 --> 01:50:35,840
THE THAT STUDY SAMPLE SHOULD BE

2731
01:50:35,840 --> 01:50:38,080
DIVERSE IN TERMS OF BACKGROUND

2732
01:50:38,080 --> 01:50:39,880
AS FAR AS RACE ETHNICITY GENDER

2733
01:50:39,880 --> 01:50:43,000
IDENTITY, ET CETERA BUT ALSO

2734
01:50:43,000 --> 01:50:44,920
AMONG FOLKS IN TERMS OF

2735
01:50:44,920 --> 01:50:46,120
DIVERSITY, WHAT ASTEISM

2736
01:50:46,120 --> 01:50:49,160
EXPERIENCE LOOKS LIKE, IN TERMS

2737
01:50:49,160 --> 01:50:52,240
OF SUPPORT NEEDS AND

2738
01:50:52,240 --> 01:50:53,680
CO-OCCURRING CONDITIONS AND

2739
01:50:53,680 --> 01:50:55,160
WHETHER FOLKS HAVE INTELLECTUAL

2740
01:50:55,160 --> 01:50:56,400
DISABILITY, THERE'S STUDIES THAT

2741
01:50:56,400 --> 01:50:58,040
TEND TO RULE OUT FOLKS BASED

2742
01:50:58,040 --> 01:51:02,120
ONCO OCCURRING CONDITIONS SO

2743
01:51:02,120 --> 01:51:04,840
SOMETIMES STUDIES ARE MISLEADING

2744
01:51:04,840 --> 01:51:06,840
IN LITERATURE ON PHYSICAL

2745
01:51:06,840 --> 01:51:08,360
SCIENCE ELEMENTS THAT YOU MAY

2746
01:51:08,360 --> 01:51:11,040
SEE SOMETHING OUT THERE AND IT

2747
01:51:11,040 --> 01:51:12,240
MAY BE CONFUSING BECAUSE OF THE

2748
01:51:12,240 --> 01:51:13,600
FACT PEOPLE DON'T READ SOMETIMES

2749
01:51:13,600 --> 01:51:17,000
THE FULL TEXT OF THE STUDY TO

2750
01:51:17,000 --> 01:51:20,040
KNOW LIMITATIONS. AND

2751
01:51:20,040 --> 01:51:23,040
SHORTCOMINGS IN THAT STUDY AND

2752
01:51:23,040 --> 01:51:24,040
WHERE IT IS COMING FROM. WE

2753
01:51:24,040 --> 01:51:25,720
CAN'T REALLY ADDRESS IT IN THE

2754
01:51:25,720 --> 01:51:29,160
PLAN ALSO IS THAT THIS CHANGES

2755
01:51:29,160 --> 01:51:30,400
OVER TIME THE THING WITH SCIENCE

2756
01:51:30,400 --> 01:51:32,120
LIKE WE ARE STILL IN THE I WOULD

2757
01:51:32,120 --> 01:51:35,520
SAY INFANCY AT TIMES FOR AUTISM

2758
01:51:35,520 --> 01:51:37,440
RESEARCH IN TERMS OF THE

2759
01:51:37,440 --> 01:51:40,840
PHYSICAL SCIENCE END IS THAT IT

2760
01:51:40,840 --> 01:51:42,320
IS SOMETHING THAT IS CHANGING A

2761
01:51:42,320 --> 01:51:45,840
LOT OVER TIME AS FURTHER

2762
01:51:45,840 --> 01:51:46,520
RESEARCH INVESTMENT IN THIS

2763
01:51:46,520 --> 01:51:49,200
SPACE. I HOPE FOLKS CAN BE AWARE

2764
01:51:49,200 --> 01:51:54,000
OF THAT IN THE GENERAL PUBLIC, I

2765
01:51:54,000 --> 01:51:56,320
DON'T KNOW THE PLAN IS IN PLACE

2766
01:51:56,320 --> 01:51:58,560
FOR THAT BUT UNDERSTAND THIS IS

2767
01:51:58,560 --> 01:52:00,120
IN FLUX AND SOME OF THE ELEMENTS

2768
01:52:00,120 --> 01:52:01,800
WE HAVE BEEN LEARNING THE 5, 10,

2769
01:52:01,800 --> 01:52:04,080
15 YEARS BECAUSE OF THE FACT HOW

2770
01:52:04,080 --> 01:52:05,320
UNDERSTUDIED AUTISM WAS OVERALL

2771
01:52:05,320 --> 01:52:07,800
AND WE KNEW ALMOST NOTHING ABOUT

2772
01:52:07,800 --> 01:52:08,680
SOME OF THE UNDERPINNINGS IN

2773
01:52:08,680 --> 01:52:12,560
TERMS OF GENETIC AND NON-GENETIC

2774
01:52:12,560 --> 01:52:14,200
FACTORS, 20, 25 YEARS AGO.

2775
01:52:14,200 --> 01:52:14,600
THANKS.

2776
01:52:14,600 --> 01:52:20,080
>> THANK YOU. SO WITH THE
WORD

2777
01:52:20,080 --> 01:52:22,160
ENVIRONMENTAL, IT DOES BRING UP

2778
01:52:22,160 --> 01:52:24,680
MORE BIOLOGICAL MECHANISM WHICH

2779
01:52:24,680 --> 01:52:26,480
IS WHAT WE ARE FOCUSING ON IN

2780
01:52:26,480 --> 01:52:28,240
THIS CHAPTER WE TRIED TO KEEP

2781
01:52:28,240 --> 01:52:33,120
THE SOCIAL SCIENCE IN CHAPTER 6,

2782
01:52:33,120 --> 01:52:34,440
WE DON'T WANT TO MISLEAD PEOPLE

2783
01:52:34,440 --> 01:52:36,640
TO TALK ABOUT SOCIAL FACTORS

2784
01:52:36,640 --> 01:52:38,280
THAT ALSO CONTRIBUTE TO THE

2785
01:52:38,280 --> 01:52:41,920
AUTISTIC EXPERIENCE. IN THIS

2786
01:52:41,920 --> 01:52:44,720
CHAPTER BECAUSE IT STARTED

2787
01:52:44,720 --> 01:52:46,000
MIXING TOO MANY THINGS TOGETHER

2788
01:52:46,000 --> 01:52:48,800
AND MIGHT MAKE A SHIFT IN THE

2789
01:52:48,800 --> 01:52:50,200
COUNTING OF PROJECTS WHEN WE GO

2790
01:52:50,200 --> 01:52:51,440
BACK TO DO THE PORTFOLIO

2791
01:52:51,440 --> 01:52:52,520
ANALYSIS.  WE WILL TAKE THAT

2792
01:52:52,520 --> 01:52:55,840
INTO CONSIDERATION MAKING SURE

2793
01:52:55,840 --> 01:52:57,440
THAT WE COVER SOME OF THE ISSUES

2794
01:52:57,440 --> 01:53:05,880
YOU MENTIONED IN THE PLAN.

2795
01:53:05,880 --> 01:53:10,400
>> THANK YOU. MY HUSBAND
IS A

2796
01:53:10,400 --> 01:53:14,600
MAJOR RESEARCHER. HE HAS BEEN

2797
01:53:14,600 --> 01:53:16,920
INVOLVED IN MANY DIFFERENT TYPES

2798
01:53:16,920 --> 01:53:20,960
OF THINGS. HE BRINGS UP A

2799
01:53:20,960 --> 01:53:23,120
QUESTION I PUT IT OUT AS A

2800
01:53:23,120 --> 01:53:24,600
QUESTION, BECAUSE I DON'T KNOW

2801
01:53:24,600 --> 01:53:26,720
WHERE THIS IS NECESSARILY GOING

2802
01:53:26,720 --> 01:53:30,880
WITH THE SECOND POINT HERE.

2803
01:53:30,880 --> 01:53:32,880
ABOUT HOW WE LOOK AT AUTISM,

2804
01:53:32,880 --> 01:53:37,520
WILL WE GET TO THE POINT WE HAVE

2805
01:53:37,520 --> 01:53:40,520
DONE WITH SAY CANCER? I WILL

2806
01:53:40,520 --> 01:53:42,760
BRING IN TO THAT PERSONAL THING

2807
01:53:42,760 --> 01:53:45,400
WITH MY BROTHER-IN-LAW WHO HAD A

2808
01:53:45,400 --> 01:53:46,400
VERY RARE TYPE OF CANCER WHERE

2809
01:53:46,400 --> 01:53:49,560
THERE WAS ABOUT A 4% SURVIVAL

2810
01:53:49,560 --> 01:53:51,440
RATE BUT THEY WERE ABLE TO

2811
01:53:51,440 --> 01:53:54,040
TARGET PARTICULAR THINGS TO HIS

2812
01:53:54,040 --> 01:53:56,160
BIOLOGY TO WHAT IT WAS THAT WAS

2813
01:53:56,160 --> 01:53:58,640
IMPACTING HIM AND THEY WERE ABLE

2814
01:53:58,640 --> 01:54:04,280
TO TREAT THE SUBSET OF CAPITAL C

2815
01:54:04,280 --> 01:54:07,080
CANCER VERY SUCCESSFULLY. HE IS

2816
01:54:07,080 --> 01:54:10,120
NOW 18 YEARS OUT. BUT I BRING

2817
01:54:10,120 --> 01:54:14,680
THAT IN WITH CAN WE OR SHOULD WE

2818
01:54:14,680 --> 01:54:18,280
LOOK AT HOW WE CAN ENCOURAGE

2819
01:54:18,280 --> 01:54:19,280
LOOKING AT DIFFERENT SUB SETS

2820
01:54:19,280 --> 01:54:26,120
BECAUSE IF WE CAN IDENTIFY TYPES

2821
01:54:26,120 --> 01:54:28,040
OF AUTISM EARLY ON WOULD THERE

2822
01:54:28,040 --> 01:54:29,680
BE DIFFERENT MODALITIES TO

2823
01:54:29,680 --> 01:54:31,560
UTILIZE IN HELPING THESE

2824
01:54:31,560 --> 01:54:32,920
INDIVIDUALS. THIS MAY BE

2825
01:54:32,920 --> 01:54:36,000
UNDERWAY, I HAVE NOT SEEN THAT,

2826
01:54:36,000 --> 01:54:37,160
I HAVE NOT DONE THAT RESEARCH

2827
01:54:37,160 --> 01:54:39,480
BUT I PUT IT OUT AS A QUESTION

2828
01:54:39,480 --> 01:54:42,800
AT THE SAME TIME AS I WOULD LIKE

2829
01:54:42,800 --> 01:54:43,920
TO ASK SOMETHING ABOUT THIS

2830
01:54:43,920 --> 01:54:46,880
BECAUSE WE ARE INVOLVED IN THE

2831
01:54:46,880 --> 01:54:48,240
GENETICS COMPONENT I IMAGINE

2832
01:54:48,240 --> 01:54:51,320
PEOPLE HERE ARE AWARE OF WHAT IS

2833
01:54:51,320 --> 01:54:52,760
HAPPENING WITH THE SPARKS

2834
01:54:52,760 --> 01:54:55,480
RESEARCH. THE GENETIC

2835
01:54:55,480 --> 01:54:56,280
COLLECTIONS THEY HAVE BEEN

2836
01:54:56,280 --> 01:54:57,040
GETTING FROM FAMILIES AND

2837
01:54:57,040 --> 01:55:03,920
INDIVIDUALS.  IS THERE A WAY CAN

2838
01:55:03,920 --> 01:55:05,840
WE REFERENCE THESE THINGS, IS

2839
01:55:05,840 --> 01:55:06,880
THERE SOMETHING ARE WE GOING TO

2840
01:55:06,880 --> 01:55:10,320
DO SOMETHING ASIDE OF WHAT

2841
01:55:10,320 --> 01:55:12,440
HEAVILY FUNDED LARGE RESEARCH

2842
01:55:12,440 --> 01:55:14,280
PROJECT THAT IS GOING ON THAT

2843
01:55:14,280 --> 01:55:19,560
MAY BE ADDRESSING SOME OF THE

2844
01:55:19,560 --> 01:55:22,160
ISSUISSUES WE LISTED WITH TOPICO

2845
01:55:22,160 --> 01:55:26,760
TWO POINTS THERE.

2846
01:55:26,760 --> 01:55:29,280
>> SO IDENTIFYING SUB
TYPES,

2847
01:55:29,280 --> 01:55:31,040
THAT IS PARTIALLY IN QUESTION

2848
01:55:31,040 --> 01:55:35,200
TWO THERE, IS SOME IN QUESTION 3

2849
01:55:35,200 --> 01:55:36,720
AS WELL, NOT LISTED ON THE SLIDE

2850
01:55:36,720 --> 01:55:40,520
BUT IS TOUCHED UPON BUT WE CAN

2851
01:55:40,520 --> 01:55:42,080
MAKE SURE THAT THAT IS STILL

2852
01:55:42,080 --> 01:55:44,440
THERE. WE DID MENTION SPARK IN

2853
01:55:44,440 --> 01:55:45,880
TERMS OF LARGE STUDIES AND THERE

2854
01:55:45,880 --> 01:55:47,320
ARE SOME OTHERS THAT WE HAVE

2855
01:55:47,320 --> 01:55:51,440
MENTIONED AS WELL.  ALSO THERE

2856
01:55:51,440 --> 01:55:52,480
WILL BE OPPORTUNITY TO

2857
01:55:52,480 --> 01:55:53,280
POTENTIALLY TAKE ADVANTAGE OF

2858
01:55:53,280 --> 01:55:55,080
OTHER BIG STUDIES THAT ARE NOT

2859
01:55:55,080 --> 01:55:57,360
AUTISM FOCUSED BUT COULD HAVE

2860
01:55:57,360 --> 01:55:59,360
AUTISM QUESTION OR COMPONENT

2861
01:55:59,360 --> 01:56:02,320
SOMEWHERWE WILL

2862
01:56:02,320 --> 01:56:03,200
CERTAINLY WANT TO REFERENCE

2863
01:56:03,200 --> 01:56:04,640
THOSE ONGOING PROJECTS AS WELL

2864
01:56:04,640 --> 01:56:13,880
AS MAKE ROOM FOR ANYTHING NEW TO

2865
01:56:13,880 --> 01:56:14,160
COME ALONG.

2866
01:56:14,160 --> 01:56:16,360
>> FOR PURPOSE OF
CLARIFICATION.

2867
01:56:16,360 --> 01:56:18,720
SOME WAY SPARK IS STUDY AND

2868
01:56:18,720 --> 01:56:19,880
DR. SOMPALLI: WAYS IT IS NOT A

2869
01:56:19,880 --> 01:56:21,880
STUDY, IT IS A RESOURCE THAT IS

2870
01:56:21,880 --> 01:56:25,960
BEING CREATED.  SO FAMILIES,

2871
01:56:25,960 --> 01:56:27,800
PERSONS WHO VOLUNTEER TO

2872
01:56:27,800 --> 01:56:29,200
PARTICIPATE IN SPARK, THAT DON'T

2873
01:56:29,200 --> 01:56:30,760
HAVE TO BUT ONE WAY THEY CAN

2874
01:56:30,760 --> 01:56:33,960
PARTICIPATE IS BY PROVIDING A

2875
01:56:33,960 --> 01:56:36,960
SALIVA SAMPLE WHICH DOES UNDERGO

2876
01:56:36,960 --> 01:56:37,880
GENETIC SEQUENCING.

2877
01:56:37,880 --> 01:56:39,800
ANYTHING RELATED TO AUTISM OR

2878
01:56:39,800 --> 01:56:40,640
INTELLECTUAL DISABILITY THEN

2879
01:56:40,640 --> 01:56:43,640
THAT IS REPORTED.  TO THE PEOPLE

2880
01:56:43,640 --> 01:56:45,960
WHO SUBMIT SPECIMENS AND ALSO

2881
01:56:45,960 --> 01:56:47,280
TOLD NOTHING IS FOUND THAT IS

2882
01:56:47,280 --> 01:56:49,120
NOT TO RELATE TO AUTISM

2883
01:56:49,120 --> 01:56:51,680
INTELLECTUAL DISABILITY. THAT IS

2884
01:56:51,680 --> 01:56:53,520
REALLY ALL THAT SPARKED US IN

2885
01:56:53,520 --> 01:56:55,960
AND OF ITSELF IT IS NOT QUITE A

2886
01:56:55,960 --> 01:56:57,320
STUDY. OF THAT RESOURCE THE

2887
01:56:57,320 --> 01:56:59,560
GROUP OF ALL SAMPLES ALL THE

2888
01:56:59,560 --> 01:57:00,800
SEQUENCING DATA IS MADE

2889
01:57:00,800 --> 01:57:03,480
AVAILABLE BY APPLICATION TO

2890
01:57:03,480 --> 01:57:05,480
QUALIFY RESEARCHERS WHO HAVE

2891
01:57:05,480 --> 01:57:07,720
ETHICS APPROVAL FROM THEIR OWN

2892
01:57:07,720 --> 01:57:10,360
INSTITUTIONS. OFTEN TIMES IN

2893
01:57:10,360 --> 01:57:11,240
COMBINATION WITH OTHER

2894
01:57:11,240 --> 01:57:12,160
SEQUENCING DATA FROM OTHER

2895
01:57:12,160 --> 01:57:15,800
PROJECTS TO LOOK AT THINGS THAT

2896
01:57:15,800 --> 01:57:17,000
REQUIRE LARGE NUMBERS OF

2897
01:57:17,000 --> 01:57:18,000
PARTICIPANTS WHEN LOOKING AT

2898
01:57:18,000 --> 01:57:19,000
POLYGENIC FACTORS THAT MIGHT BE

2899
01:57:19,000 --> 01:57:24,960
RELATED TO AUTISM.

2900
01:57:24,960 --> 01:57:26,080
>> THANKS FOR THAT

2901
01:57:26,080 --> 01:57:27,760
CLARIFICATION, PAUL. IS THERE

2902
01:57:27,760 --> 01:57:28,600
ANYTHING AS LONG AS YOU ARE

2903
01:57:28,600 --> 01:57:29,720
SPEAKING ABOUT THIS CHAPTER THAT

2904
01:57:29,720 --> 01:57:30,960
YOU THINK WE SHOULD TRY TO

2905
01:57:30,960 --> 01:57:33,280
EMPHASIZE OR ANYTHING NEW WE

2906
01:57:33,280 --> 01:57:36,040
WANT TO TAKE INTO ACCOUNT?

2907
01:57:36,040 --> 01:57:37,840
>> NO OTHER COMMENTS AT
THIS

2908
01:57:37,840 --> 01:57:38,240
POINT. THANK YOU.

2909
01:57:38,240 --> 01:57:41,200
>> THANK YOU. DINA.

2910
01:57:41,200 --> 01:57:43,760
>> I TRIED TO SIT AND
LISTEN

2911
01:57:43,760 --> 01:57:45,640
MORE THAN ANYTHING FROM THIS

2912
01:57:45,640 --> 01:57:52,080
SEGMENT. I DID WANT TO SHARE

2913
01:57:52,080 --> 01:57:53,560
THAT THIS KIND OF TOPIC HAS COME

2914
01:57:53,560 --> 01:57:57,720
UP AT THE RQS. WHEN I CAME IN

2915
01:57:57,720 --> 01:58:01,760
THERE WE HAD A PREVENTION POLICY

2916
01:58:01,760 --> 01:58:05,560
WHICH RAISED CONCERNS. IT HAS

2917
01:58:05,560 --> 01:58:06,880
SINCE BEEN EVOLVED TO CAUTIONS

2918
01:58:06,880 --> 01:58:09,280
AND EFFECTS. -- CAUSE AND

2919
01:58:09,280 --> 01:58:10,640
EFFECT. IT GETS EASY WHEN YOU

2920
01:58:10,640 --> 01:58:13,000
ARE LOOKING AT THINGS LIKE

2921
01:58:13,000 --> 01:58:16,960
TOXICITY IN THE WATER, LEAD

2922
01:58:16,960 --> 01:58:21,120
POISONING IN PAINT. CLEARLY

2923
01:58:21,120 --> 01:58:21,880
SOMEONE WITH AUTISM CONDITION

2924
01:58:21,880 --> 01:58:23,840
THAT EXPERIENCES EXPOSURE TO

2925
01:58:23,840 --> 01:58:25,840
THOSE ENVIRONMENTAL TOXINS ARE

2926
01:58:25,840 --> 01:58:27,560
GOING TO EXPERIENCE MUCH MORE

2927
01:58:27,560 --> 01:58:30,560
COMPLICATED OUTCOME FROM THAT.

2928
01:58:30,560 --> 01:58:31,920
IN THAT WAY DEFINING

2929
01:58:31,920 --> 01:58:33,480
ENVIRONMENTAL CAUSES, BECOMES

2930
01:58:33,480 --> 01:58:38,800
PRETTY SIMPLE. BUT I THINK THAT

2931
01:58:38,800 --> 01:58:41,280
SOME OF THE GENETIC STUDIES ARE

2932
01:58:41,280 --> 01:58:44,080
QUITE HAMPERED BECAUSE THE

2933
01:58:44,080 --> 01:58:47,520
ETHICS AROUND THE PURPOSE AROUND

2934
01:58:47,520 --> 01:58:50,360
GENETIC STUDIES ISN'T ALWAYS

2935
01:58:50,360 --> 01:58:52,600
TRANSPARENT. AS A RESULT, MANY

2936
01:58:52,600 --> 01:58:53,840
INDIVIDUALS DON'T PARTICIPATE IN

2937
01:58:53,840 --> 01:59:01,480
GENETICS RESEARCH. I THINK

2938
01:59:01,480 --> 01:59:03,040
BECAUSE THE ETHICS HAVE NOT KEPT

2939
01:59:03,040 --> 01:59:04,480
UP WITH CAPACITIES OF THE

2940
01:59:04,480 --> 01:59:07,880
RESEARCH. IN OTHER WORDS, HOW DO

2941
01:59:07,880 --> 01:59:14,080
WE LOOK AT GENETICS TO AS

2942
01:59:14,080 --> 01:59:15,640
CERTAIN HARD HARD WIRING OF

2943
01:59:15,640 --> 01:59:16,840
AUTISTIC INDIVIDUALS FOR

2944
01:59:16,840 --> 01:59:19,720
ANXIETY. CAN WE REDUCE THEIR

2945
01:59:19,720 --> 01:59:22,400
ANXIETY? OR ARE WE TRYING TO

2946
01:59:22,400 --> 01:59:23,520
MAKE THEM INDISTINGUISHABLE FROM

2947
01:59:23,520 --> 01:59:26,720
THEIR PEERS? THE SIMONS

2948
01:59:26,720 --> 01:59:28,600
FOUNDATION WHEN THEY RECEIVED

2949
01:59:28,600 --> 01:59:33,680
THEIR AWARD AT NSAR SAID THEY

2950
01:59:33,680 --> 01:59:35,440
HOPED TO CURE AUTISM. THAT KIND

2951
01:59:35,440 --> 01:59:38,960
OF LANGUAGE AND THOSE KINDS OF

2952
01:59:38,960 --> 01:59:42,400
TRAJECTORIES ARE VERY UNNERVING

2953
01:59:42,400 --> 01:59:45,600
FOR OUR POPULATION. . I DON'T

2954
01:59:45,600 --> 01:59:49,080
KNOW WHAT TO DO WITH ALL THAT

2955
01:59:49,080 --> 01:59:54,760
EXCEPT TO SAY IN TERMS OF

2956
01:59:54,760 --> 01:59:56,560
GENETIC SUPPORT FROM IACC, IT

2957
01:59:56,560 --> 01:59:58,400
NEEDS TO FOCUS ON THINGS THAT

2958
01:59:58,400 --> 02:00:00,280
ARE EMANCIPATORY, THINGS THAT

2959
02:00:00,280 --> 02:00:03,160
REDUCE STRESS, ANXIETY,

2960
02:00:03,160 --> 02:00:07,720
DIFFICULTIES WITH COMMUNICATION,

2961
02:00:07,720 --> 02:00:09,680
INTELLECTUAL DISABILITY THAT IS

2962
02:00:09,680 --> 02:00:12,800
QUITE SUBSTANTIAL. AND TO BE

2963
02:00:12,800 --> 02:00:15,760
SURE WE ARE DELINEATING BETWEEN

2964
02:00:15,760 --> 02:00:18,520
THAT AND TRYING TO ELIMINATE THE

2965
02:00:18,520 --> 02:00:21,160
CONDITION AS A WHOLE. WE ARE

2966
02:00:21,160 --> 02:00:23,920
HUMAN BEINGS, WE DO CONTRIBUTE

2967
02:00:23,920 --> 02:00:28,200
TO SOCIETY, WE DO CONTRIBUTE TO

2968
02:00:28,200 --> 02:00:29,200
RESEARCH WE WOULD LIKE LIFE TO

2969
02:00:29,200 --> 02:00:31,600
BE EASIER. I'M NOT SURE ETHICS

2970
02:00:31,600 --> 02:00:33,440
RESEARCH IS ABLE TO DELINEATE

2971
02:00:33,440 --> 02:00:39,440
THAT QUITE YET.  I WANTED TO

2972
02:00:39,440 --> 02:00:40,640
VERBALIZE THAT CONCERN, I DON'T

2973
02:00:40,640 --> 02:00:41,480
KNOW WHAT TO DO WITH IT BUT

2974
02:00:41,480 --> 02:00:46,920
WANTED TO CONVEY IT. 

2975
02:00:46,920 --> 02:00:48,320
>> THANK YOU FOR SHARING
THAT,

2976
02:00:48,320 --> 02:00:50,320
WE DID TRY TO MAKE A CHANCE TO

2977
02:00:50,320 --> 02:00:51,960
ADDRESS IT IN THE CHAPTER SO

2978
02:00:51,960 --> 02:00:54,000
WHEN YOU HAVE A CHANCE TO READ

2979
02:00:54,000 --> 02:00:55,040
IT LET US KNOW IF THERE'S

2980
02:00:55,040 --> 02:00:57,840
ANYTHING TO ADD OR ANYTHING THAT

2981
02:00:57,840 --> 02:01:00,080
STILL DOESN'T MATCH. WE DID TRY

2982
02:01:00,080 --> 02:01:02,840
TO ADDRESS THAT ISSUE. SOMETHING

2983
02:01:02,840 --> 02:01:03,760
Y'ALL MIGHT BE INTERESTED IN

2984
02:01:03,760 --> 02:01:05,440
BEING AWARE OF IS THE NATIONAL

2985
02:01:05,440 --> 02:01:08,240
HUMAN GENOME RESEARCH INSTITUTE

2986
02:01:08,240 --> 02:01:11,200
NIH IS SPONSORING A CONFERENCE

2987
02:01:11,200 --> 02:01:13,320
ON GENETICS AND ABLEISM AS

2988
02:01:13,320 --> 02:01:16,960
RELATES TO DISABILITY. IN THE

2989
02:01:16,960 --> 02:01:18,440
FALL. IN IN OCTOBER. WE CAN

2990
02:01:18,440 --> 02:01:21,280
SHARE MORE INFORMATION ON THAT. 

2991
02:01:21,280 --> 02:01:25,360
IT IS AVAILABLE ON THE WEBSITE,

2992
02:01:25,360 --> 02:01:27,760
WE HAVE IT ON OUR IACC WEBSITE,

2993
02:01:27,760 --> 02:01:30,480
IT IS ON THE WEB IN TERMS OF

2994
02:01:30,480 --> 02:01:34,360
NHGRI'S WEBSITE.  WE CAN --

2995
02:01:34,360 --> 02:01:35,280
SOMEONE FROM OUR TEAM MIGHT BE

2996
02:01:35,280 --> 02:01:36,920
ABLE TO PUT THE LINK INTO ZOOM,

2997
02:01:36,920 --> 02:01:39,240
THE PUBLIC WON'T BE ABLE TO SEE

2998
02:01:39,240 --> 02:01:40,480
IT BUT IT IS ALREADY ON OUR

2999
02:01:40,480 --> 02:01:43,320
WEBSITE, IF YOU GOOGLE IT

3000
02:01:43,320 --> 02:01:45,800
ABLEISM NHGRI CONFERENCE YOU

3001
02:01:45,800 --> 02:01:50,080
PROBABLY WILL SEE IT IT.  SO WE

3002
02:01:50,080 --> 02:01:51,120
RECOGNIZE THAT AND HOPE YOU

3003
02:01:51,120 --> 02:01:51,920
MIGHT LEARN SOMETHING FROM THAT

3004
02:01:51,920 --> 02:01:55,040
CONFERENCE TOO SO THAT WE CAN BE

3005
02:01:55,040 --> 02:01:57,760
ABLE TO USE FOR THE PLAN.

3006
02:01:57,760 --> 02:02:05,240
ALICIA, YOU NEXT.

3007
02:02:05,240 --> 02:02:09,160
>> SORRY, I WAS GOING TO
SAY

3008
02:02:09,160 --> 02:02:12,360
TAKE PAUL FIRST. I MIGHT JUST

3009
02:02:12,360 --> 02:02:15,680
COPY HIM, BUT I WANT TO JUST IN

3010
02:02:15,680 --> 02:02:17,160
ADDITION TO WHAT PAUL HAS TO SAY

3011
02:02:17,160 --> 02:02:19,560
I WANT TO REINFORCE TO THIS

3012
02:02:19,560 --> 02:02:21,600
GROUP AND TO EVERYBODY THAT

3013
02:02:21,600 --> 02:02:23,840
THERE IS NOTHING INHERENTLY

3014
02:02:23,840 --> 02:02:26,480
ABOUT GENETICS RESEARCH THAT

3015
02:02:26,480 --> 02:02:31,200
PEOPLE -- PEOPLE DO NOT CONDUCT

3016
02:02:31,200 --> 02:02:32,760
RESEARCH OR STUDY GENETICS OF

3017
02:02:32,760 --> 02:02:33,800
AUTISM OR ANY CONDITION BECAUSE

3018
02:02:33,800 --> 02:02:35,240
THEY WANT TO ELIMINATE ANYTHING.

3019
02:02:35,240 --> 02:02:36,680
PEOPLE STUDY THE GENETICS OF

3020
02:02:36,680 --> 02:02:38,400
HEIGHT, THEY STUDY THE GENETICS

3021
02:02:38,400 --> 02:02:41,760
OF EYE COLOR, THIS IS TO HAVE A

3022
02:02:41,760 --> 02:02:44,000
BETTER UNDERSTANDING. SO IF THEY

3023
02:02:44,000 --> 02:02:45,280
NEED TO CLARIFY THAT MANY THE

3024
02:02:45,280 --> 02:02:47,000
STRATEGIC PLAN LET'S CLARIFY

3025
02:02:47,000 --> 02:02:49,840
THAT. BUT ON THE WHOLE GENETICS

3026
02:02:49,840 --> 02:02:53,040
RESEARCH IS NOT AIMED AT

3027
02:02:53,040 --> 02:02:53,920
ELIMINATING ANYTHING.

3028
02:02:53,920 --> 02:02:55,160
>> THANKS FOR THAT COMMENT

3029
02:02:55,160 --> 02:02:58,720
ALICIA. I THINK IT HAS BEEN A

3030
02:02:58,720 --> 02:02:59,840
CHANGE IN DIRECTION BACK MORE

3031
02:02:59,840 --> 02:03:01,520
THAN A DECADE AGO. PREVENTION

3032
02:03:01,520 --> 02:03:06,560
WAS ON THE TABLE. IT WAS PARSE

3033
02:03:06,560 --> 02:03:07,800
OF THE FIRST IACC STRATEGIC

3034
02:03:07,800 --> 02:03:10,800
PLAN. WE MADE AN EFFORT TO SHIFT

3035
02:03:10,800 --> 02:03:12,920
SOME OF THAT LANGUAGE AS WE HAVE

3036
02:03:12,920 --> 02:03:14,120
REFLECTED WHAT IS HAPPENING IN

3037
02:03:14,120 --> 02:03:15,400
THE COMMITTEE, WHAT'S HAPPENING

3038
02:03:15,400 --> 02:03:18,400
WITH FUNDERS, ET CETERA, THE

3039
02:03:18,400 --> 02:03:19,800
FIELD HAS CHANGED IN THAT

3040
02:03:19,800 --> 02:03:21,440
RESPECT. WE TRY TO REFLECT SOME

3041
02:03:21,440 --> 02:03:24,320
OF THAT CHANGE IN THE PLAN. WE

3042
02:03:24,320 --> 02:03:25,680
WILL BE OPEN TO COMMENTS FROM

3043
02:03:25,680 --> 02:03:27,000
THE COMMITTEE AS YOU HAVE A

3044
02:03:27,000 --> 02:03:31,960
CHANCE TO REVIEW DRAFTS. PAUL.

3045
02:03:31,960 --> 02:03:34,200
>> I WILL THANK ALICIA FOR
THE

3046
02:03:34,200 --> 02:03:36,200
COMMENTS YOU DID AND OFFER A

3047
02:03:36,200 --> 02:03:38,120
SMALL CLARIFICATION. I WAS NOT

3048
02:03:38,120 --> 02:03:39,960
ABLE TO ATTEND NSAR IN PERSON

3049
02:03:39,960 --> 02:03:42,080
AND WAS NOT ABLE TO LISTEN IN TO

3050
02:03:42,080 --> 02:03:43,520
THE SESSION WHERE JIM AND

3051
02:03:43,520 --> 02:03:45,080
MARILYN SIMONS WERE PRESENTED AN

3052
02:03:45,080 --> 02:03:46,920
AWARDS.  BUT FOR CLARITY, THE

3053
02:03:46,920 --> 02:03:48,400
AWARD WAS GIVEN PERSONALLY TO

3054
02:03:48,400 --> 02:03:53,640
JIM AND MARILYN SIMONS. NOT THE

3055
02:03:53,640 --> 02:03:55,240
FOUNDATION. WE ARE GREATLY

3056
02:03:55,240 --> 02:03:56,320
ENDENTURED TO THEM FOR HAVING

3057
02:03:56,320 --> 02:03:59,080
FOUNDED THE FOUNDATION FOR

3058
02:03:59,080 --> 02:03:59,880
HAVING ENDOWED WITH MONEY TO

3059
02:03:59,880 --> 02:04:02,560
ALLOW US TO OPERATE.  WE LIKE TO

3060
02:04:02,560 --> 02:04:03,800
THINK THE -- WE SPENT THAT MONEY

3061
02:04:03,800 --> 02:04:05,880
IN A WAY THAT ADVANCE IT IS WELL

3062
02:04:05,880 --> 02:04:07,400
BEING WITH AUTISM COMMUNITY. I

3063
02:04:07,400 --> 02:04:10,160
DON'T KNOW EXACTLY WHAT WORKS

3064
02:04:10,160 --> 02:04:11,520
JIM USED IN HIS PERSONAL

3065
02:04:11,520 --> 02:04:12,560
ACCEPTANCE OF THE AWARD BUT IT

3066
02:04:12,560 --> 02:04:15,520
IS NOT THE MISSION OF THE

3067
02:04:15,520 --> 02:04:17,280
FOUNDATION OF SAFARI TO CURE

3068
02:04:17,280 --> 02:04:18,800
AUTISM. THAT IS NOT A WORD WE

3069
02:04:18,800 --> 02:04:22,200
BELIEVE IN, NOT A WORD WE USE,

3070
02:04:22,200 --> 02:04:23,360
YOU WON'T FIND IT IN OUR MISSION

3071
02:04:23,360 --> 02:04:24,680
STATEMENT. THANK YOU.

3072
02:04:24,680 --> 02:04:25,760
>> APPRECIATE THAT.

3073
02:04:25,760 --> 02:04:27,240
>> I APPRECIATE THE

3074
02:04:27,240 --> 02:04:29,880
CLARIFICATION. THANK YOU.

3075
02:04:29,880 --> 02:04:32,600
>> THANK YOU. SCOTT. DO
YOU HAVE

3076
02:04:32,600 --> 02:04:33,160
A COMMENT?

3077
02:04:33,160 --> 02:04:35,280
>> THANKS, SUSAN. IT JUST

3078
02:04:35,280 --> 02:04:37,480
OCCURRED TO ME WITH DISCUSSION

3079
02:04:37,480 --> 02:04:39,720
AND THE FACT THAT ETHICAL

3080
02:04:39,720 --> 02:04:41,240
IMPLICATIONS IS ONE OF THE TOPIC

3081
02:04:41,240 --> 02:04:47,160
AREAS HERE. I WAS WONDERING IF

3082
02:04:47,160 --> 02:04:49,080
THERE SOMETHING -- COULD BE

3083
02:04:49,080 --> 02:04:51,840
DISCUSSION OF CONFERENCES OR

3084
02:04:51,840 --> 02:04:55,640
SYMPOSIA ON ETHICAL LEGAL

3085
02:04:55,640 --> 02:05:01,440
SOCIETAL ASPECTS, ABOUT A DECADE

3086
02:05:01,440 --> 02:05:03,000
AGO Y'ALL IN THE U.S. DEPARTMENT

3087
02:05:03,000 --> 02:05:05,560
OF HEALTH AND HUMAN SERVICES TWO

3088
02:05:05,560 --> 02:05:09,760
DIFFERENT AGENCIES NIH AND ACL

3089
02:05:09,760 --> 02:05:11,120
FUNDED CONFERENCES IN THIS SPACE

3090
02:05:11,120 --> 02:05:15,480
ONE WAS RUN BY NIH ITSELF,

3091
02:05:15,480 --> 02:05:18,000
SUSAN, YOU SPEARHEADED THAT I

3092
02:05:18,000 --> 02:05:20,360
THINK? AND WHEN WAS -- ONE WAS

3093
02:05:20,360 --> 02:05:24,400
FUNDED BY ACL, ASAN AND IT RAN A

3094
02:05:24,400 --> 02:05:27,640
CONFERENCE SYMPOSIA AT SYMPOSIUM

3095
02:05:27,640 --> 02:05:30,640
AT HARVARD LAW SCHOOL ON ETHICAL

3096
02:05:30,640 --> 02:05:33,280
LEGAL SOCIETAL IMPLICATIONS OF

3097
02:05:33,280 --> 02:05:35,400
AUTISM RESEARCH. WE HAVEN'T

3098
02:05:35,400 --> 02:05:38,760
REALLY HAD MAJOR CONFERENCES IN

3099
02:05:38,760 --> 02:05:39,880
THAT SPACE SINCE THEN THE LAST

3100
02:05:39,880 --> 02:05:41,200
DECADE AS MUCH EVEN THOUGH THERE

3101
02:05:41,200 --> 02:05:45,320
IS A PRESSING NEED MAYBE THAT'S

3102
02:05:45,320 --> 02:05:46,160
MENTIONED IN DESCRIPTION THAT

3103
02:05:46,160 --> 02:05:49,320
FITS INTO THE ETHICAL SPACE WITH

3104
02:05:49,320 --> 02:05:51,680
SCIENCE AND RESEARCH, IS HAVING

3105
02:05:51,680 --> 02:05:52,960
CONFERENCES OF THAT NATURE AND

3106
02:05:52,960 --> 02:05:55,640
ALSO HAVING MORE INPUT FROM THE

3107
02:05:55,640 --> 02:05:58,480
PUBLIC IN TERMS OF DIFFERENT

3108
02:05:58,480 --> 02:06:03,160
PERSPECTIVES ON AUTISM RESEARCH

3109
02:06:03,160 --> 02:06:04,800
AND ETHICAL POLICY ELEMENTS,

3110
02:06:04,800 --> 02:06:09,000
SOCIETAL ASPECTS OF WHAT IT

3111
02:06:09,000 --> 02:06:11,400
LOOKS LIKE AND HOW IT HAS IMPACT

3112
02:06:11,400 --> 02:06:15,240
ON FOLKS. I THINK THAT FITS INTO

3113
02:06:15,240 --> 02:06:16,800
CLARIFYING WHAT WAS DISCUSSED IN

3114
02:06:16,800 --> 02:06:19,480
TERMS OF ON GENETICS BECAUSE IT

3115
02:06:19,480 --> 02:06:24,560
IS HELPFUL TO PROVIDE CONTEXT ON

3116
02:06:24,560 --> 02:06:26,200
HOW COMMITTEE APPROACH IN TERMS

3117
02:06:26,200 --> 02:06:29,640
OF THE CONTEXT FOR GENETICS ON

3118
02:06:29,640 --> 02:06:31,280
HERE, YEAH THERE ARE SOME FOLKS

3119
02:06:31,280 --> 02:06:32,840
THAT WHEN THEY DO SEE GENETICS

3120
02:06:32,840 --> 02:06:34,360
THEY SEE SOME OF THE HISTORY

3121
02:06:34,360 --> 02:06:36,360
THERE RELATED TO GENETIC AND

3122
02:06:36,360 --> 02:06:38,480
GENETIC TESTING AND WHAT IT

3123
02:06:38,480 --> 02:06:39,400
MEANS AS FAR AS FOR AUTISM. SO

3124
02:06:39,400 --> 02:06:41,120
THERE IS A LITTLE HISTORY IN

3125
02:06:41,120 --> 02:06:42,840
TERMS OF SOME CONNOTATION AND

3126
02:06:42,840 --> 02:06:46,280
THAT CONTEXT WOULD BE HELPFUL

3127
02:06:46,280 --> 02:06:48,280
LOOKING AT GENETICS PARTIALLY

3128
02:06:48,280 --> 02:06:50,560
FOR HELPING SUPPORT HOW YOU CAN

3129
02:06:50,560 --> 02:06:52,080
EMPOWER FOLKS AND HELP ADDRESS

3130
02:06:52,080 --> 02:06:56,600
THESE MAJOR CHALLENGES AS

3131
02:06:56,600 --> 02:06:58,600
MENTIONED EARLIER BY OTHER

3132
02:06:58,600 --> 02:07:00,760
COMMITTEE MEMBERS. WHAT GENETICS

3133
02:07:00,760 --> 02:07:05,920
FACTORS MAYBE HELPFUL FOR

3134
02:07:05,920 --> 02:07:07,080
SUPPORTING WHETHER MEDICAL

3135
02:07:07,080 --> 02:07:10,000
THINGS OR OTHERWISE THAT HELP

3136
02:07:10,000 --> 02:07:11,160
EMPOWER FOLKS AGAINST

3137
02:07:11,160 --> 02:07:13,440
DIFFICULTIES AND CHALLENGES AS

3138
02:07:13,440 --> 02:07:15,200
THEY GO THROUGH LIVED EXPERIENCE

3139
02:07:15,200 --> 02:07:18,440
AND HUMAN DEVELOPMENT OVER TIME.

3140
02:07:18,440 --> 02:07:20,280
I THINK SOME OF THE GENERAL

3141
02:07:20,280 --> 02:07:21,880
POPULATION WITHOUT CONTEXT MAY

3142
02:07:21,880 --> 02:07:23,520
NOT UNDERSTAND THAT, SOMETIMES

3143
02:07:23,520 --> 02:07:25,640
THEY MAY HAVE A NARROW VIEW OF

3144
02:07:25,640 --> 02:07:27,640
GENETICS ESPECIALLY

3145
02:07:27,640 --> 02:07:28,760
NON-RESEARCHERS THAT MAY NOT

3146
02:07:28,760 --> 02:07:30,520
UNDERSTAND THE FULL PURPOSE AND

3147
02:07:30,520 --> 02:07:32,880
FULL SET OF WHAT RESEARCHERS

3148
02:07:32,880 --> 02:07:34,200
GENETICS DO AND WHY LOOKING AT

3149
02:07:34,200 --> 02:07:37,520
THESE FACTORS. I THINK LIKE THE

3150
02:07:37,520 --> 02:07:39,680
RESEARCHERS COULD DO BETTER OF

3151
02:07:39,680 --> 02:07:40,400
COMMUNICATING THAT SOMETIMES TO

3152
02:07:40,400 --> 02:07:42,040
THE PUBLIC IN TERMS OF WHAT THEY

3153
02:07:42,040 --> 02:07:43,920
DO MANY THE CONTEXT HERE AND

3154
02:07:43,920 --> 02:07:48,760
THAT ADDING MORE CONTEXT BY THE

3155
02:07:48,760 --> 02:07:49,520
COMMITTEE IS INTEREST ON THESE

3156
02:07:49,520 --> 02:07:51,080
GENETIC FACTORS ENVIRONMENTAL

3157
02:07:51,080 --> 02:07:53,880
FACTORS, INTO THE SECTION AS FAR

3158
02:07:53,880 --> 02:07:55,600
AS TO HELP MAKE IT MORE CONCRETE

3159
02:07:55,600 --> 02:07:56,400
WOULD BE HELPFUL.

3160
02:07:56,400 --> 02:07:58,640
>> THANK YOU. WE DID TRY
TO DO

3161
02:07:58,640 --> 02:08:01,600
THAT IN THE SECTION BUT WE WILL

3162
02:08:01,600 --> 02:08:03,080
CONTINUE TO LOOK AT IT OVER THE

3163
02:08:03,080 --> 02:08:04,360
NEXT FEW MONTHS AND SEE WHAT

3164
02:08:04,360 --> 02:08:10,080
ELSE WE MIGHT BE ABLE TO ADD.

3165
02:08:10,080 --> 02:08:10,960
THANKS FOR MENTIONING THE

3166
02:08:10,960 --> 02:08:12,120
PREVIOUS CONFERENCES ON ETHICS.

3167
02:08:12,120 --> 02:08:15,560
THE ONE IACC SPONSORED WAS A

3168
02:08:15,560 --> 02:08:17,040
WHILE AGO AND SO SOME OF THAT

3169
02:08:17,040 --> 02:08:17,840
INFORMATION MIGHT BE A LITTLE

3170
02:08:17,840 --> 02:08:19,480
BIT OUTDATED NOW BECAUSE WE

3171
02:08:19,480 --> 02:08:23,440
PROBABLY MOVED FURTHER ALONG BUT

3172
02:08:23,440 --> 02:08:25,560
THIS NHGRI CONFERENCE IS

3173
02:08:25,560 --> 02:08:26,680
RELEVANT TO WORK WE DO AND WE

3174
02:08:26,680 --> 02:08:28,360
WILL BE SURE TO HAVE SOME PEOPLE

3175
02:08:28,360 --> 02:08:30,520
THAT WORK WITH THE IACC ATTEND

3176
02:08:30,520 --> 02:08:32,520
THAT AND HOPE MAYBE SOME MEMBERS

3177
02:08:32,520 --> 02:08:35,520
OF THE IACC CAN ATTEND AS WELL.

3178
02:08:35,520 --> 02:08:37,280
KEEP ME UPDATED IF YOU KNOW OF

3179
02:08:37,280 --> 02:08:38,560
THINGS HAPPENING OUT IN THE

3180
02:08:38,560 --> 02:08:40,520
FIELD AND YOU WANT US TO PAY

3181
02:08:40,520 --> 02:08:41,360
ATTENTION WE CAN LOOK INTO THAT

3182
02:08:41,360 --> 02:08:43,560
TOO.  JOE, DO YOU HAVE SOME

3183
02:08:43,560 --> 02:08:45,600
COMMENTS?

3184
02:08:45,600 --> 02:08:47,240
>> THANKS, I WANT TO SEE
IF I

3185
02:08:47,240 --> 02:08:50,160
CAN ADD TO THIS CONVERSATION,

3186
02:08:50,160 --> 02:08:50,960
MAYBE SPECIFICALLY WHAT SCOTT

3187
02:08:50,960 --> 02:08:55,680
WAS TALKING ABOUT, WITH REGARDS

3188
02:08:55,680 --> 02:08:56,960
TO WHY RESEARCH IS HAPPENING IN

3189
02:08:56,960 --> 02:09:01,080
THE CONTEXT. I SHOULD KNOW THIS,

3190
02:09:01,080 --> 02:09:02,720
START WITH A QUESTION TO SUSAN.

3191
02:09:02,720 --> 02:09:06,280
IS THERE A SECTION IN THE

3192
02:09:06,280 --> 02:09:09,360
STRATEGIC PLAN SPECIFICALLY

3193
02:09:09,360 --> 02:09:12,000
AROUND THIS QUESTION OF GENETICS

3194
02:09:12,000 --> 02:09:13,400
AND ENVIRONMENT THAT GOES INTO

3195
02:09:13,400 --> 02:09:20,120
SOME DETAIL ABOUT HOW WE USE THE

3196
02:09:20,120 --> 02:09:21,920
TERM AUTISM AND AUTISM SPECTRUM

3197
02:09:21,920 --> 02:09:24,200
DISORDER IN CERTAIN CONTEXT LIKE

3198
02:09:24,200 --> 02:09:26,840
IN DSM BUT IN OTHER CONTEXT LIKE

3199
02:09:26,840 --> 02:09:30,480
WITH (INAUDIBLE) WE DON'T THINK

3200
02:09:30,480 --> 02:09:37,520
OF IT AS ONE THING. THINK THAT

3201
02:09:37,520 --> 02:09:38,440
WOULD BE IMPORTANT POINT TO GET

3202
02:09:38,440 --> 02:09:41,680
ACROSS IN SOME WAY THAT WE MAYBE

3203
02:09:41,680 --> 02:09:43,240
ADDRESS, I THINK BEING AS

3204
02:09:43,240 --> 02:09:45,320
RAISING A CONCERN THAT OTHER

3205
02:09:45,320 --> 02:09:47,160
PEOPLE WILL RAISE AND THERE IS A

3206
02:09:47,160 --> 02:09:49,720
LOT OF CONFUSION ABOUT

3207
02:09:49,720 --> 02:09:52,040
COMPLICATED AREA OF GENETICS AND

3208
02:09:52,040 --> 02:09:54,440
WHAT THE GOALS ARE. I MEAN I DO

3209
02:09:54,440 --> 02:09:57,960
IN FACT THINK THE GOAL OF

3210
02:09:57,960 --> 02:10:01,240
GENETICS RESEARCH IN SOME CASES

3211
02:10:01,240 --> 02:10:05,680
IS TO INTERVENE AN CHANGE

3212
02:10:05,680 --> 02:10:08,520
COURSE. CERTAINLY RESEARCH IN

3213
02:10:08,520 --> 02:10:13,000
OUR INSTITUTIONS HEAVILY FOCUSED

3214
02:10:13,000 --> 02:10:15,720
ON ANGLEMEN SYNDROME AND FINDING

3215
02:10:15,720 --> 02:10:21,880
A WAY TO REVERSE THE MUTATION. 

3216
02:10:21,880 --> 02:10:25,800
BUT COMPARING IT TO (INAUDIBLE)

3217
02:10:25,800 --> 02:10:28,840
I THINK WOULD OTHERS MIGHT BE

3218
02:10:28,840 --> 02:10:30,080
THINKING ABOUT IN TERMS OF

3219
02:10:30,080 --> 02:10:31,520
AUTISM MORE BROADLY DUE TO

3220
02:10:31,520 --> 02:10:36,240
COMMON FACTORS, I THINK IS

3221
02:10:36,240 --> 02:10:38,920
REALLY CONFUSING PEOPLE SO I

3222
02:10:38,920 --> 02:10:42,280
THINK A LITTLE SET UP AS EXISTS

3223
02:10:42,280 --> 02:10:45,400
IN MANY TEXT EXPLAINING THAT

3224
02:10:45,400 --> 02:10:46,160
INTRODUCING WOULD BE REALLY

3225
02:10:46,160 --> 02:10:46,800
(INAUDIBLE).

3226
02:10:46,800 --> 02:10:49,200
>> THANK YOU. THAT'S A
HELPFUL

3227
02:10:49,200 --> 02:10:50,040
COMMENT WE CAN THINK ABOUT THAT.

3228
02:10:50,040 --> 02:10:54,240
I DON'T THINK WE DO HAVE

3229
02:10:54,240 --> 02:10:56,560
ANYTHING THAT EXPLAINS THAT, WE

3230
02:10:56,560 --> 02:10:58,000
WOULD NEED THE FIND A WAY TO DO

3231
02:10:58,000 --> 02:10:59,360
IT IN PLAIN LANGUAGE BUT I THINK

3232
02:10:59,360 --> 02:11:01,880
THAT IS A GOOD POINT AND WE CAN

3233
02:11:01,880 --> 02:11:03,760
TRY TO BRING THAT OUT EITHER IN

3234
02:11:03,760 --> 02:11:05,200
THE SECTION OR MAYBE EVEN

3235
02:11:05,200 --> 02:11:06,240
EARLIER IN THE PLAN SOMEWHERE IN

3236
02:11:06,240 --> 02:11:09,840
THE INTRODUCTION.  WE DO HAVE A

3237
02:11:09,840 --> 02:11:11,040
STATEMENT AT THE BEGINNING OF

3238
02:11:11,040 --> 02:11:13,080
THE PLAN THAT WILL BE ABOUT

3239
02:11:13,080 --> 02:11:15,480
LANGUAGE, THAT IN SOME CASES WE

3240
02:11:15,480 --> 02:11:19,880
USE AUTISM, SOMETIMES WE USE

3241
02:11:19,880 --> 02:11:22,240
AUTISM ON THE SPECTRUM WE USE

3242
02:11:22,240 --> 02:11:24,120
ASD IN PARTICULAR CONTEXT

3243
02:11:24,120 --> 02:11:25,520
TALKING ABOUT SPECIFIC DSM

3244
02:11:25,520 --> 02:11:28,960
DIAGNOSIS. WE SHARE SOME OF THE

3245
02:11:28,960 --> 02:11:30,120
BACKGROUND OF WHY DIFFERENT

3246
02:11:30,120 --> 02:11:32,880
TERMS ARE USED AND THEY MIGHT BE

3247
02:11:32,880 --> 02:11:33,440
USED INTERCHANGEABLY IN THE

3248
02:11:33,440 --> 02:11:39,520
PLAN. OTHER COMMENTS THAT PEOPLE

3249
02:11:39,520 --> 02:11:50,040
HAVE? FOR QUESTION 3. IS THERE

3250
02:12:00,920 --> 02:12:02,240
ANYTHING ELSE FROM EPA OR

3251
02:12:02,240 --> 02:12:03,800
ANYTHING FROM NIEHS THAT YOU

3252
02:12:03,800 --> 02:12:05,640
WOULD LIKE TO SAY ABOUT QUESTION

3253
02:12:05,640 --> 02:12:07,920
3? I KNOW YOU MAY NOT HAVE HAD

3254
02:12:07,920 --> 02:12:10,920
TIME TO GO OVER THIS IN DETAIL

3255
02:12:10,920 --> 02:12:14,000
BUT ANYTHING THAT YOU WOULD LIKE

3256
02:12:14,000 --> 02:12:17,520
US TO MAKE SURE WE MENTION IN

3257
02:12:17,520 --> 02:12:18,800
THIS CHAPTER AS I KNOW YOU ARE

3258
02:12:18,800 --> 02:12:29,320
EXPERTS IN THIS AREA TOO. SO NOT

3259
02:12:40,240 --> 02:12:41,600
HEARING ANYTHING. T SO THEN WE

3260
02:12:41,600 --> 02:12:42,800
ARE -- SOUNDS LIKE WE ARE FINISH

3261
02:12:42,800 --> 02:12:45,040
WITH THE DISCUSSION OF QUESTION

3262
02:12:45,040 --> 02:12:47,920
3. I HAVE SCHEDULED A 15 MINUTE

3263
02:12:47,920 --> 02:12:50,600
BREAK NOW BUT WE JUST TOOK A

3264
02:12:50,600 --> 02:12:51,920
BREAK, WOULD YOU RAISE YOUR HAND

3265
02:12:51,920 --> 02:12:53,520
IF YOU WANT US TO TAKE A BREAK

3266
02:12:53,520 --> 02:12:55,680
RIGHT NOW? AND IF I DON'T SEE

3267
02:12:55,680 --> 02:12:58,000
RAISED HANDS MAYBE JUST GO ON TO

3268
02:12:58,000 --> 02:13:00,400
QUESTION 4 AND MAYBE GET DONE

3269
02:13:00,400 --> 02:13:05,040
EARLIER THAN SCHEDULED? ANYONE

3270
02:13:05,040 --> 02:13:09,360
FOR A BREAK AT THE MOMENT? NOT

3271
02:13:09,360 --> 02:13:10,440
SEEING ANY HANDS SO SOUNDS LIKE

3272
02:13:10,440 --> 02:13:11,520
PEOPLE ARE COMFORTABLE WITH

3273
02:13:11,520 --> 02:13:15,480
GOING ON TO QUESTION FOUR. .. .I

3274
02:13:15,480 --> 02:13:23,320
WILL MOVE US INTO THAT. THIS IS

3275
02:13:23,320 --> 02:13:26,880
ON INTERVENTIONS. THE SHORTENED

3276
02:13:26,880 --> 02:13:28,680
NEW TEXT IS WHICH INTERVENTIONS

3277
02:13:28,680 --> 02:13:35,360
WILL IMPROVE QUALITY OF LIFE? 

3278
02:13:35,360 --> 02:13:38,240
THE SUB TOPICS INCLUDED WITHIN

3279
02:13:38,240 --> 02:13:39,800
QUESTION 4 ARE MEDICAL

3280
02:13:39,800 --> 02:13:44,200
PHARMACOLOGICAL INTERVENTIONS,

3281
02:13:44,200 --> 02:13:46,920
BEHAVIORAL AND DEVELOPMENTAL

3282
02:13:46,920 --> 02:13:48,040
INTERVENTIONS COMPLIMENTARY AND

3283
02:13:48,040 --> 02:13:51,640
ALTERNATIVE APPROACH, TECHNOLOGY

3284
02:13:51,640 --> 02:13:52,760
BASED INTERVENTION AND

3285
02:13:52,760 --> 02:13:53,680
COMMUNICATION INTERVENTIONS

3286
02:13:53,680 --> 02:13:57,640
INCLUDING AAC. INTERVENTIONS FOR

3287
02:13:57,640 --> 02:13:59,680
CO-OCCURRING CONDITIONS.  

3288
02:13:59,680 --> 02:14:02,960
OUTCOME MEASURES AND BIOMARKERS 

3289
02:14:02,960 --> 02:14:05,960
RESEARCH AND POLICY ISSUES

3290
02:14:05,960 --> 02:14:09,520
INCLUDING INCLUSION IN RESEARCH

3291
02:14:09,520 --> 02:14:12,880
DISPARITIES AND ACCESS TO

3292
02:14:12,880 --> 02:14:14,520
INTERVENTIONS AND THE NEEDS OF

3293
02:14:14,520 --> 02:14:16,040
HIGH SUPPORT NEEDS AND

3294
02:14:16,040 --> 02:14:17,480
INTERVENTIONS IN THE WORK FORCE

3295
02:14:17,480 --> 02:14:18,960
INTERVENTION WORK SPACE. THOSE

3296
02:14:18,960 --> 02:14:20,600
ARE GENERAL CATEGORIES BUT SAME

3297
02:14:20,600 --> 02:14:22,720
DISCUSSION QUESTIONS, DO YOU

3298
02:14:22,720 --> 02:14:23,600
HAVE ANY IMPORTANT TOPICS THAT

3299
02:14:23,600 --> 02:14:25,720
YOU WOULD LIKE TO SEE

3300
02:14:25,720 --> 02:14:27,320
HIGHLIGHTED IN THIS SECTION OF

3301
02:14:27,320 --> 02:14:28,680
THE STRATEGIC PLAN AND HAVE

3302
02:14:28,680 --> 02:14:30,800
THERE BEEN ANY RECENT

3303
02:14:30,800 --> 02:14:31,880
SIGNIFICANT CHANGES THAT MIGHT

3304
02:14:31,880 --> 02:14:34,280
SHIFT THE FOCUS IN THIS

3305
02:14:34,280 --> 02:14:35,800
STRATEGIC PLAN, THINGS THAT

3306
02:14:35,800 --> 02:14:39,000
MIGHT NEED TO BE TAKEN INTO

3307
02:14:39,000 --> 02:14:42,760
CONSIDERATION BY FUNDERS AND

3308
02:14:42,760 --> 02:14:45,680
RESEARCHERS AND PEOPLE THAT ARE

3309
02:14:45,680 --> 02:14:46,440
MANAGING SERVICE PROGRAMS OR

3310
02:14:46,440 --> 02:14:51,320
WRITING POLICY IN THE AREA OF

3311
02:14:51,320 --> 02:14:55,600
INTERVENTIONS? JENNIFER.

3312
02:14:55,600 --> 02:14:56,840
>> I DON'T HAVE ANY
QUESTIONS ON

3313
02:14:56,840 --> 02:14:59,720
THE TOPICS, I HAD MORE OF A

3314
02:14:59,720 --> 02:15:02,560
REACTION TO THE TITLE FOR THIS

3315
02:15:02,560 --> 02:15:08,680
CHAPTER. WHICH REFERENCE QUALITY

3316
02:15:08,680 --> 02:15:10,880
OF LIFE. I REACTED TO IT BECAUSE

3317
02:15:10,880 --> 02:15:14,400
OF THE WAY I HEARD THAT I GUESS

3318
02:15:14,400 --> 02:15:16,680
IS BASICALLY PEOPLE WITH AUTISM

3319
02:15:16,680 --> 02:15:18,360
HAVE A LOWER QUALITY OF LIFE.

3320
02:15:18,360 --> 02:15:21,960
AND THAT SOMEHOW SUGGESTED

3321
02:15:21,960 --> 02:15:23,440
THAT'S THEIR FAULT WHICH IS

3322
02:15:23,440 --> 02:15:26,120
REALLY NOT TRUE, IT IS MORE THAT

3323
02:15:26,120 --> 02:15:28,640
SOCIETY HASN'T FULLY INCLUDED

3324
02:15:28,640 --> 02:15:32,640
PEOPLE WITH AUTISM TO ADEQUATELY

3325
02:15:32,640 --> 02:15:35,240
SUPPORT THEM LIVING WELL IN THE

3326
02:15:35,240 --> 02:15:41,200
COMMUNITY. SO JUST WONDERING IF

3327
02:15:41,200 --> 02:15:44,000
THERE COULD BE OPPORTUNITY TO

3328
02:15:44,000 --> 02:15:46,320
REFRAME QUESTION 4 SO THAT IT IS

3329
02:15:46,320 --> 02:15:47,800
NOT PUTTING THE BURDEN ON

3330
02:15:47,800 --> 02:15:51,960
AUTISTIC PEOPLE BUT MORE TALKING

3331
02:15:51,960 --> 02:15:54,000
ABOUT WHAT INTERVENTIONS ARE

3332
02:15:54,000 --> 02:15:55,000
NEEDED TO SUPPORT QUALITY

3333
02:15:55,000 --> 02:15:57,880
COMMUNITY LIVING, THERE'S

3334
02:15:57,880 --> 02:15:59,760
SOMETHING TO THAT EFFECT. I

3335
02:15:59,760 --> 02:16:02,200
DON'T KNOW IF I HAVE THE WORDS

3336
02:16:02,200 --> 02:16:06,240
TO SUGGEST BUT IT IS IMPORTANT

3337
02:16:06,240 --> 02:16:07,120
TO RETHINK THAT ONE.

3338
02:16:07,120 --> 02:16:08,520
>> HOW ABOUT WHICH
INTERVENTIONS

3339
02:16:08,520 --> 02:16:12,640
ARE NEEDED TO BEST SUPPORT

3340
02:16:12,640 --> 02:16:14,720
AUTISTIC PEOPLE OR SOMETHING

3341
02:16:14,720 --> 02:16:16,720
ALONG THOSE LINES. IS THAT

3342
02:16:16,720 --> 02:16:16,960
BETTER?

3343
02:16:16,960 --> 02:16:18,320
>> WE HAVE TO PLAY WITH IT
A

3344
02:16:18,320 --> 02:16:21,320
LITTLE BIT BUT YEAH, JUST

3345
02:16:21,320 --> 02:16:23,280
SOMETHING THAT CAN BETTER

3346
02:16:23,280 --> 02:16:23,520
REFLECT.

3347
02:16:23,520 --> 02:16:27,760
>> IF YOU THINK OF
SOMETHING

3348
02:16:27,760 --> 02:16:30,720
EMAIL SUGGESTIONS DEFINITELY

3349
02:16:30,720 --> 02:16:32,800
OPEN TO TO CHANGING THAT TO BE A

3350
02:16:32,800 --> 02:16:34,800
BETTER FIT. DINA.

3351
02:16:34,800 --> 02:16:37,440
>> MAYBE SOMETHING THAT
FOCUSES

3352
02:16:37,440 --> 02:16:43,640
ON THE SYSTEMS ITSELF P. WHICH

3353
02:16:43,640 --> 02:16:46,960
SYSTEMIC INTERVENTIONS CAN

3354
02:16:46,960 --> 02:16:50,720
MAXIMIZE QUALITY OF LIFE OR

3355
02:16:50,720 --> 02:16:54,240
SOMETHING WITH THE WORDS SYSTEMS

3356
02:16:54,240 --> 02:16:57,000
OR SYSTEMIC IN IT MIGHT BE

3357
02:16:57,000 --> 02:16:58,560
HELPFUL. BACK TO PRIOR SLIDE?

3358
02:16:58,560 --> 02:17:00,680
>> THE CHAPTER COVERS MORE
THAN

3359
02:17:00,680 --> 02:17:05,880
SYSTEMIC INTERVENTIONS INCLUDES

3360
02:17:05,880 --> 02:17:07,560
DRUG INTERVENTION AS AND

3361
02:17:07,560 --> 02:17:09,120
BEHAVIORAL INTERVENTIONS SO IT

3362
02:17:09,120 --> 02:17:10,920
DOES HAVE SYSTEMIC INTERVENTION

3363
02:17:10,920 --> 02:17:12,360
BUT UMBRELLA FOR LOTS OF THINGS.

3364
02:17:12,360 --> 02:17:18,040
>> UNDER RESEARCH AND
POLICY

3365
02:17:18,040 --> 02:17:20,280
ISSUES, ONE CLINICAL LENG WE

3366
02:17:20,280 --> 02:17:23,920
HAVEN'T BEEN TALKING ABOUT MUCH

3367
02:17:23,920 --> 02:17:27,080
IS REALITY THAT MANY INDIVIDUALS

3368
02:17:27,080 --> 02:17:28,640
WHO SUBJECTIVELY WOULD BE

3369
02:17:28,640 --> 02:17:30,840
PERCEIVED HAVING LOW SUPPORT

3370
02:17:30,840 --> 02:17:32,720
NEEDS, THEY ACTUALLY HAVE

3371
02:17:32,720 --> 02:17:36,320
INCREDIBLE DAILY LIVING

3372
02:17:36,320 --> 02:17:40,360
CHALLENGES. UNFORTUNATELY OUR

3373
02:17:40,360 --> 02:17:44,600
POLICIES ARE DRIVEN BY IQ, BY

3374
02:17:44,600 --> 02:17:47,480
SUBJECTIVE OBSERVATION OF A

3375
02:17:47,480 --> 02:17:50,480
PERSON IN A SITUATION, RATHER

3376
02:17:50,480 --> 02:17:53,160
THAN TAKING INTO CONSIDERATION

3377
02:17:53,160 --> 02:17:55,800
THEIR REPORTING SIGNIFICANT

3378
02:17:55,800 --> 02:18:00,360
IMPAIRMENTS RELATED TO THINGS AS

3379
02:18:00,360 --> 02:18:04,320
BASIC AS FOOD SECURITY AND

3380
02:18:04,320 --> 02:18:06,400
HOUSING AND THE FACT THAT THEY

3381
02:18:06,400 --> 02:18:10,160
ARE UNSUPPORTED AUTISM NEEDS

3382
02:18:10,160 --> 02:18:14,240
LEAD INTO CO-OCCURRING

3383
02:18:14,240 --> 02:18:15,680
CONDITIONS LIKE DEPRESSION

3384
02:18:15,680 --> 02:18:17,040
ANXIETY SUICIDAL IDEATION. WHEN

3385
02:18:17,040 --> 02:18:18,520
WE LOOK AT THE PIE CLEARLY

3386
02:18:18,520 --> 02:18:21,280
PEOPLE WITH HIGH SUPPORT NEEDS

3387
02:18:21,280 --> 02:18:24,200
NEED MORE INTERVENTIONS MORE

3388
02:18:24,200 --> 02:18:26,680
FREQUENTLY HIGHER INTENSITY BUT

3389
02:18:26,680 --> 02:18:28,800
QUITE OFTEN THAT RESULTS IN US

3390
02:18:28,800 --> 02:18:31,320
FAILING TO ACKNOWLEDGE IF YOU

3391
02:18:31,320 --> 02:18:34,440
HAVE AN AUTISM DIAGNOSIS IS FEW

3392
02:18:34,440 --> 02:18:36,080
AS FIVE THE TEN HOURS A WEEK

3393
02:18:36,080 --> 02:18:38,920
COULD BE LIFE ALTERING. SO THAT

3394
02:18:38,920 --> 02:18:41,280
IT SHOULD BE BASED ON NEED AND

3395
02:18:41,280 --> 02:18:44,960
NOT BASED ON THESE RANDOM

3396
02:18:44,960 --> 02:18:46,760
TESTING FORMULAS I GUESS IS WHAT

3397
02:18:46,760 --> 02:18:50,400
I'M TRYING TO SAY.

3398
02:18:50,400 --> 02:18:52,120
>> THANK YOU. THAT IS
HELPFUL.

3399
02:18:52,120 --> 02:18:53,640
IN TERMS OF HIGH SUPPORT NEEDS,

3400
02:18:53,640 --> 02:18:56,720
THAT WAS MEANT TO BE PRETTY

3401
02:18:56,720 --> 02:18:58,480
INCLUSIVE NOT JUST IT COULD

3402
02:18:58,480 --> 02:18:59,720
INCLUDE CO-OCCURRING CONDITIONS

3403
02:18:59,720 --> 02:19:03,160
AND OTHER THINGS. BUT WANTED TO

3404
02:19:03,160 --> 02:19:05,240
MENTION THAT AS THE PUBLIC HAS

3405
02:19:05,240 --> 02:19:07,520
MENTIONED THE IMPORTANCE OF

3406
02:19:07,520 --> 02:19:09,000
BEING INCLUSIVE ACROSS THE

3407
02:19:09,000 --> 02:19:09,800
ENTIRE SPECTRUM AND THAT

3408
02:19:09,800 --> 02:19:11,440
INCLUDES ALL THE DIFFERENT

3409
02:19:11,440 --> 02:19:13,960
CO-OCCURRING CONDITIONS TOO THAT

3410
02:19:13,960 --> 02:19:15,960
CAN MAKE FOR CHALLENGES FOR

3411
02:19:15,960 --> 02:19:18,080
INDIVIDUALS ON THE SPECTRUM, WE

3412
02:19:18,080 --> 02:19:18,520
APPRECIATE THAT.

3413
02:19:18,520 --> 02:19:23,280
>> I WANT TO BE CLEAR,

3414
02:19:23,280 --> 02:19:26,840
DELINEATING THE DIFFERENCE IN A

3415
02:19:26,840 --> 02:19:29,440
KEOGH OCCURRING CONDITION VERSUS

3416
02:19:29,440 --> 02:19:31,880
UNMET SUPPORT NEEDS. WHAT WE ARE

3417
02:19:31,880 --> 02:19:35,680
MISSING IS PEOPLE WHO HAVE

3418
02:19:35,680 --> 02:19:37,280
FINISHED ACADEMICS WITH

3419
02:19:37,280 --> 02:19:40,320
INTENSIVE SUPPORTS, PEOPLE WHO

3420
02:19:40,320 --> 02:19:44,080
HAVE PART TIME EMPLOYMENT, MAY

3421
02:19:44,080 --> 02:19:46,120
STILL BE HAVING UNMET SUPPORT

3422
02:19:46,120 --> 02:19:47,920
NEEDS THAT PREVENT THEM FROM

3423
02:19:47,920 --> 02:19:50,760
MOVING PERHAPS FULL TIME OR NOT

3424
02:19:50,760 --> 02:19:52,200
PROVIDED ADEQUATE INTERVENTIONS

3425
02:19:52,200 --> 02:19:54,200
AND SUPPORT TO JUST BE HELPING

3426
02:19:54,200 --> 02:19:58,640
IN A PART TIME STATUS. SO I --

3427
02:19:58,640 --> 02:20:01,840
YEAH THERE IS A CATEGORY FOR

3428
02:20:01,840 --> 02:20:03,040
CO-OCCURRING CONDITIONS BUT SO

3429
02:20:03,040 --> 02:20:04,360
OFTEN THOSE CONDITIONS ARE

3430
02:20:04,360 --> 02:20:06,680
DIRECT RELATIONSHIP TO UNMET

3431
02:20:06,680 --> 02:20:08,760
SUPPORT NEEDS. RELATED TO THE

3432
02:20:08,760 --> 02:20:09,240
AUTISM ITSELF.

3433
02:20:09,240 --> 02:20:11,400
>> YES. THAT IS AN
IMPORTANT

3434
02:20:11,400 --> 02:20:13,960
POINT WE DID TRY TO BRING THAT

3435
02:20:13,960 --> 02:20:15,320
INTO QUESTION 6 WHERE WE TALK

3436
02:20:15,320 --> 02:20:18,080
ABOUT HOUSING EMPLOYMENT AND WE

3437
02:20:18,080 --> 02:20:18,960
MENTION FOOD SECURITY AND THINGS

3438
02:20:18,960 --> 02:20:21,840
LIKE THAT. SO WE DIDN'T USE THE

3439
02:20:21,840 --> 02:20:22,840
TERMINOLOGY UP MET SUPPORT NEEDS

3440
02:20:22,840 --> 02:20:25,160
BUT THAT IS A GOOD WAY TO

3441
02:20:25,160 --> 02:20:26,040
DESCRIBE THAT AND YOU CAN

3442
02:20:26,040 --> 02:20:30,200
CERTAINLY BRING THAT OUT HERE.  

3443
02:20:30,200 --> 02:20:34,600
IN THAT CHAPTER. HERE WE HAD A

3444
02:20:34,600 --> 02:20:36,240
TITLER GROUP, A LARGE GROUP OF

3445
02:20:36,240 --> 02:20:39,120
DIFFERENT INTERVENTIONS. GOOD

3446
02:20:39,120 --> 02:20:40,280
POINT. WE APPRECIATE THAT.

3447
02:20:40,280 --> 02:20:42,680
SCOTT. 

3448
02:20:42,680 --> 02:20:45,840
>> THANKS, SUSAN. I WANT
TO SAY

3449
02:20:45,840 --> 02:20:48,320
I CONCUR ON THE NEED FOR PUTTING

3450
02:20:48,320 --> 02:20:50,000
IN THAT UNMET SUPPORT NEEDS, I

3451
02:20:50,000 --> 02:20:52,120
THINK IS REALLY HELPFUL EVEN IF

3452
02:20:52,120 --> 02:20:54,360
JUST A SMALL REFERENCE HERE

3453
02:20:54,360 --> 02:20:56,200
VERSUS THE OTHER CHAPTER. I

3454
02:20:56,200 --> 02:20:58,480
THINK THAT THERE IS -- THAT IS

3455
02:20:58,480 --> 02:21:00,320
-- ALSO FITS INTO THE ISSUE WE

3456
02:21:00,320 --> 02:21:02,160
HAVE NOW OF FOLKS MAKING

3457
02:21:02,160 --> 02:21:05,040
JUDGMENTS BASED ON DSM DIAGNOSIS

3458
02:21:05,040 --> 02:21:07,680
AND WHAT LEVEL SUPPORT WAS

3459
02:21:07,680 --> 02:21:10,640
INDICATED BY THE CLINICIAN,

3460
02:21:10,640 --> 02:21:12,680
WHETHER L 1, 2, 3 AND FOLKS ARE

3461
02:21:12,680 --> 02:21:15,040
MAKING JUDGMENTS RATHER THAN

3462
02:21:15,040 --> 02:21:17,080
LOOKING AT THINGS BASED ON

3463
02:21:17,080 --> 02:21:19,320
ACTUAL NEED OF THE PERSON. I

3464
02:21:19,320 --> 02:21:20,800
KNOW MANY AUTISTIC FOLKS

3465
02:21:20,800 --> 02:21:21,960
ADOLESCENTS AND ADULTS THAT'S

3466
02:21:21,960 --> 02:21:24,040
HAPPENED TO THEM FREQUENTLY. I

3467
02:21:24,040 --> 02:21:26,320
MYSELF TO BE HONEST I HAVE MANY

3468
02:21:26,320 --> 02:21:27,640
UNMET SUPPORT NEEDS BUT FOLKS

3469
02:21:27,640 --> 02:21:29,040
MAKE JUDGMENTS BECAUSE THEY SEE

3470
02:21:29,040 --> 02:21:30,960
ME SOMETIMES AT THESE IACC

3471
02:21:30,960 --> 02:21:32,520
MEETINGS OR OTHER WEBINARS AND

3472
02:21:32,520 --> 02:21:34,120
SEE ME SPEAK AND HEAR MY JOB

3473
02:21:34,120 --> 02:21:36,240
TITLE. THEY MAKE GENERALIZATIONS

3474
02:21:36,240 --> 02:21:37,800
ABOUT MY LIVED EXPERIENCE, THEY

3475
02:21:37,800 --> 02:21:41,080
HAVE NEVER SEEN ME ON A DAILY

3476
02:21:41,080 --> 02:21:42,840
LIFE BASIS. THAT IS TRUE FOR A

3477
02:21:42,840 --> 02:21:44,640
LOT OF OTHER AUTISTIC PEOPLE IN

3478
02:21:44,640 --> 02:21:46,880
ADULT LIFE AND I WOULD EXTEND

3479
02:21:46,880 --> 02:21:49,560
THAT TO ADOLESCENT AND CHILDHOOD

3480
02:21:49,560 --> 02:21:50,920
TOO WHO HAVE FREQUENTLY UNMET

3481
02:21:50,920 --> 02:21:53,560
SUPPORT NEEDS AND AS WAS

3482
02:21:53,560 --> 02:21:54,920
MENTIONED SOMETIMES JUST A FEW

3483
02:21:54,920 --> 02:21:56,040
OR SEVERAL HOURS A WEEK COULD

3484
02:21:56,040 --> 02:21:57,360
MAKE THE DIFFERENCE BETWEEN

3485
02:21:57,360 --> 02:21:58,400
ENHANCING SOMEONE'S QUALITY OF

3486
02:21:58,400 --> 02:22:00,160
LIFE AND HAVING JUST BETTER

3487
02:22:00,160 --> 02:22:03,320
HEALTH AN WELLNESS, IT IS NOT

3488
02:22:03,320 --> 02:22:05,120
ALWAYS A PERSON NEEDS 40, 50

3489
02:22:05,120 --> 02:22:07,040
HOURS EXTRA SERVICES BUT THEY

3490
02:22:07,040 --> 02:22:08,280
MAY NEED A LITTLE EXTRA SUPPORT

3491
02:22:08,280 --> 02:22:10,800
AND SERVICES AND OUR SYSTEMS ARE

3492
02:22:10,800 --> 02:22:14,480
NOT WELL GOOD OR JUST NOT WELL

3493
02:22:14,480 --> 02:22:18,840
SET UP TO SUPPORT FOLKS IN THAT

3494
02:22:18,840 --> 02:22:20,720
CUSTOMIZE NATURE THAT WHERE

3495
02:22:20,720 --> 02:22:23,680
MAYBE A FEW HOURS OF SUPPORT. I

3496
02:22:23,680 --> 02:22:25,160
WOULD ALSO SAY DO YOU HAVE THE

3497
02:22:25,160 --> 02:22:27,760
SPACE SUSAN TO CONSIDER MOVING

3498
02:22:27,760 --> 02:22:29,440
LIKE -- MOVING AROUND THE ORDER

3499
02:22:29,440 --> 02:22:30,720
WHERE THESE APPEAR IN THE

3500
02:22:30,720 --> 02:22:32,360
CHAPTER IN TERMS OF WHICH

3501
02:22:32,360 --> 02:22:34,280
SUBSECTIONS COME NEXT? IF ER

3502
02:22:34,280 --> 02:22:35,720
UNABLE TO DO THAT I WOULD MOVE

3503
02:22:35,720 --> 02:22:37,160
TECHNOLOGY BASED INTERVENTIONS

3504
02:22:37,160 --> 02:22:38,840
AND COMMUNICATION INTERVENTIONS

3505
02:22:38,840 --> 02:22:41,320
AND IACC TO BE EARLIER MAYBE

3506
02:22:41,320 --> 02:22:44,160
FIRST BECAUSE IT IS SO

3507
02:22:44,160 --> 02:22:46,040
UNDERFOCUS SUCH A MAJOR PRIORITY

3508
02:22:46,040 --> 02:22:46,920
AMONG AUTISTIC PEOPLE IN TERMS

3509
02:22:46,920 --> 02:22:50,240
OF COMMUNICATION NEEDS AND

3510
02:22:50,240 --> 02:22:51,640
SUPPORTS VERSUS THE OTHER FACETS

3511
02:22:51,640 --> 02:22:54,280
MEDICAL AND PHARMACOLOGICAL HAVE

3512
02:22:54,280 --> 02:22:55,800
BEEN A MAJOR FOCUS STRATEGIC

3513
02:22:55,800 --> 02:22:57,520
PLAN FOR A LONG TIME, FOLKS ARE

3514
02:22:57,520 --> 02:22:59,720
AWARE OF THAT. BUT I THINK IT

3515
02:22:59,720 --> 02:23:02,400
WOULD HELP TO ADD TECHNOLOGY AND

3516
02:23:02,400 --> 02:23:04,280
COMMUNICATION SUPPORTS AND IACC

3517
02:23:04,280 --> 02:23:07,560
SUPPORT FOR FOLKS TREMENDOUSLY

3518
02:23:07,560 --> 02:23:08,880
IMPORTANT TO HAVE THAT PERHAPS

3519
02:23:08,880 --> 02:23:12,800
AS I SAY THE FIRST SUBSECTION IN

3520
02:23:12,800 --> 02:23:16,000
Q4 TO APPEAR BEFORE THESE OTHER

3521
02:23:16,000 --> 02:23:18,400
AREAS, THAT WOULD HELP HIGHLIGHT

3522
02:23:18,400 --> 02:23:20,880
PRIORITY THAT MAJOR UNMET NEEDS

3523
02:23:20,880 --> 02:23:22,440
THERE FOR SUPPORTS AND SERVICES

3524
02:23:22,440 --> 02:23:23,920
FOR FOLKS TO HELP ENHANCE

3525
02:23:23,920 --> 02:23:26,960
QUALITY OF LIFE. I DO ALSO

3526
02:23:26,960 --> 02:23:28,840
CONCUR WITH -- MAYBE SOMETHING

3527
02:23:28,840 --> 02:23:30,080
WRAPPED AROUND ENHANCED QUALITY

3528
02:23:30,080 --> 02:23:32,640
OF LIFE OR ENHANCED HEALTH AND

3529
02:23:32,640 --> 02:23:34,320
WELLNESS AND QUALITY OF LIFE OR

3530
02:23:34,320 --> 02:23:35,480
HEALTH AND WELLNESS OR SOMETHING

3531
02:23:35,480 --> 02:23:36,680
LIKE THAT, BECAUSE THAT IS WHAT

3532
02:23:36,680 --> 02:23:39,280
THESE ARE ALL AIMED AT DOING IS

3533
02:23:39,280 --> 02:23:40,720
EMPOWERING FOLKS TO HAVE A

3534
02:23:40,720 --> 02:23:42,360
BETTER HEALTH AND WELLNESS,

3535
02:23:42,360 --> 02:23:43,640
BETTER QUALITY OF LIFE IN LINE

3536
02:23:43,640 --> 02:23:45,440
WITH PRIORITIES UNDER THE CARES

3537
02:23:45,440 --> 02:23:47,200
ACT IN TERMS OF THAT, THE REASON

3538
02:23:47,200 --> 02:23:48,160
YOU ARE HAVING THESE

3539
02:23:48,160 --> 02:23:49,400
INTERVENTIONS OR THE REASON FOR

3540
02:23:49,400 --> 02:23:52,000
SUPPORTS AND SERVICES IS TO

3541
02:23:52,000 --> 02:23:53,880
BOOST FOLKS UP. TO ADDRESS

3542
02:23:53,880 --> 02:23:55,840
CHALLENGES FOR THE SAKE OF

3543
02:23:55,840 --> 02:23:57,880
EMPOWERMENT PERSPECTIVE. IT IS

3544
02:23:57,880 --> 02:23:58,880
HELPFUL TO HAVE THAT CONTEXT IN

3545
02:23:58,880 --> 02:24:00,320
HERE.

3546
02:24:00,320 --> 02:24:02,200
>> THANK YOU. CERTAINLY WE
CAN

3547
02:24:02,200 --> 02:24:05,200
LOOK INTO THE ORDER I SEE THAT

3548
02:24:05,200 --> 02:24:06,480
YETTA ALSO MENTIONED SHE LIKED

3549
02:24:06,480 --> 02:24:10,200
THE IDEA OF SEEING TECHNOLOGY

3550
02:24:10,200 --> 02:24:11,520
AND COMMUNICATION MAYBE IN A

3551
02:24:11,520 --> 02:24:13,760
DIFFERENT ORDER. WE WILL SEE HOW

3552
02:24:13,760 --> 02:24:17,040
THE FLOW GOES WITH THE CHAPTER

3553
02:24:17,040 --> 02:24:20,360
BUT WE DID WANT TO MAKE A BIGGER

3554
02:24:20,360 --> 02:24:23,080
EMPHASIS ON TECHNOLOGY BASED

3555
02:24:23,080 --> 02:24:24,000
INTERVENTION AND COMMUNICATION

3556
02:24:24,000 --> 02:24:25,120
BASED INTERVENTIONS MADE IN THE

3557
02:24:25,120 --> 02:24:26,400
PAST SO THAT'S BEEN AN EFFORT

3558
02:24:26,400 --> 02:24:27,360
AND WE WILL TAKE ANOTHER LOOK AT

3559
02:24:27,360 --> 02:24:31,080
THAT. ALICIA.

3560
02:24:31,080 --> 02:24:34,000
>> I JUST DON'T WANT -- I
KNOW

3561
02:24:34,000 --> 02:24:36,200
DINA DIDN'T SEE IT THIS WAY, I

3562
02:24:36,200 --> 02:24:38,320
DON'T WANT US TO LOSE SIGHT OF

3563
02:24:38,320 --> 02:24:40,840
THE ISSUES AROUND CO-OCCURRING

3564
02:24:40,840 --> 02:24:42,720
CONDITIONS WHILE THEY WILL NOT

3565
02:24:42,720 --> 02:24:44,280
PART OF THE AUTISM PER SE, WE

3566
02:24:44,280 --> 02:24:46,360
DON'T KNOW IF THEY ARE OR NOT

3567
02:24:46,360 --> 02:24:49,160
BUT THINGS LIKE SEIZURES AND

3568
02:24:49,160 --> 02:24:51,480
GASTRO INTESTINAL PROBLEMS, AND

3569
02:24:51,480 --> 02:24:55,200
OTHER MEDICAL AND OTHER

3570
02:24:55,200 --> 02:24:56,360
CO-MORBID DIS AND CO-OCCURRING

3571
02:24:56,360 --> 02:24:59,080
CONDITIONS ARE NOT PART OF THE

3572
02:24:59,080 --> 02:25:01,000
FOUR AUTISM SYMPTOMS AND CAN

3573
02:25:01,000 --> 02:25:02,960
OCCUR ANYONE HOWEVER THEY ARE

3574
02:25:02,960 --> 02:25:05,240
GREATLY MISUNDERSTOOD IN E

3575
02:25:05,240 --> 02:25:06,200
DEVELOPMENTAL DISORDERS. WE

3576
02:25:06,200 --> 02:25:07,720
DON'T HAVE THE RIGHT TOOLS TO

3577
02:25:07,720 --> 02:25:10,480
STUDY THEM. THE PROCEDURES USED

3578
02:25:10,480 --> 02:25:12,680
TO ASSESS THEM ARE WHOLLY

3579
02:25:12,680 --> 02:25:13,160
INAPPROPRIATE FOR THIS

3580
02:25:13,160 --> 02:25:16,720
COMMUNITY. SO I KNOW SHE DIDN'T

3581
02:25:16,720 --> 02:25:18,320
END IT THIS WAY BUT MAKE SURE WE

3582
02:25:18,320 --> 02:25:21,480
ALSO HIGHLIGHT THE CO-OCCURRING

3583
02:25:21,480 --> 02:25:21,920
CONDITIONS.

3584
02:25:21,920 --> 02:25:24,640
>> 100% AGREE WITH YOU
ALICIA. I

3585
02:25:24,640 --> 02:25:27,920
WAS THINKING AROUND MENTAL

3586
02:25:27,920 --> 02:25:29,080
HEALTH, THANKS FOR CLARIFYING

3587
02:25:29,080 --> 02:25:31,320
THAT. AGREE.

3588
02:25:31,320 --> 02:25:35,000
>> IACC HAS BEEN VERY
FOCUSED ON

3589
02:25:35,000 --> 02:25:36,240
ADDRESSING CO-OCCURRING

3590
02:25:36,240 --> 02:25:37,560
CONDITIONS BECAUSE IT IS

3591
02:25:37,560 --> 02:25:38,480
SOMETHING THAT AUTISTIC

3592
02:25:38,480 --> 02:25:41,880
INDIVIDUALS AND FAMILIES TALK

3593
02:25:41,880 --> 02:25:46,720
ABOUT ALL THE TIME HAVING IMPACT

3594
02:25:46,720 --> 02:25:48,840
ON BEING ABLE TO LIVE HEALTHY

3595
02:25:48,840 --> 02:25:50,040
AND WELL SO MAKE SURE WE ADDRESS

3596
02:25:50,040 --> 02:25:53,560
THAT IN A GREATER WAY.  

3597
02:25:53,560 --> 02:25:57,160
JENNIFER.

3598
02:25:57,160 --> 02:26:01,960
>> SO I THINK ONE OF MY
COMMENTS

3599
02:26:01,960 --> 02:26:05,280
IS SUPPORTING THE ADDRESSING

3600
02:26:05,280 --> 02:26:06,440
UNMET NEEDS AND SUPPORTS BECAUSE

3601
02:26:06,440 --> 02:26:08,040
WHEN I THINK OF INTERVENTION AND

3602
02:26:08,040 --> 02:26:15,080
LOOK AT THIS LIST, SOME MISSING

3603
02:26:15,080 --> 02:26:18,400
RELATING TO UNMET NEEDS SO

3604
02:26:18,400 --> 02:26:19,520
INTERVENTIONS THAT OCCUR RELATED

3605
02:26:19,520 --> 02:26:21,280
TO HOUSING THAT IMPROVE FOR WHAT

3606
02:26:21,280 --> 02:26:25,040
WE ARE CALLING QUALITY OF LIFE

3607
02:26:25,040 --> 02:26:27,040
OR EMPLOYMENT INTERVENTIONS THAT

3608
02:26:27,040 --> 02:26:28,400
SUPPORT GETTING EMPLOYMENT OR

3609
02:26:28,400 --> 02:26:32,440
STAYING EMPLOYED.  GENERAL HOME

3610
02:26:32,440 --> 02:26:35,200
COMMUNITY BASE SERVICES THAT

3611
02:26:35,200 --> 02:26:39,520
COULD BE VIEWED INTERVENTIONS

3612
02:26:39,520 --> 02:26:42,840
AND THAT MEETING THESE SHIPPING

3613
02:26:42,840 --> 02:26:44,320
UNMET NEEDS BUT OFTENTIMES UNMET

3614
02:26:44,320 --> 02:26:49,520
NEEDS.  HOW WE FACTOR INTO THE

3615
02:26:49,520 --> 02:26:50,480
QUESTION AS RELATES TO

3616
02:26:50,480 --> 02:26:59,120
INTERVENTIONS. ANOTHER THING IN

3617
02:26:59,120 --> 02:27:01,160
THIS LIST, IT MAY FOLLOW

3618
02:27:01,160 --> 02:27:03,160
DEVELOPMENTAL INTERVENTIONS BUT

3619
02:27:03,160 --> 02:27:04,200
ALSO INTERVENTIONS I THINK ABOUT

3620
02:27:04,200 --> 02:27:05,800
WHAT IS HAPPENING IN SCHOOLS AND

3621
02:27:05,800 --> 02:27:06,800
DIFFERENT INTERVENTIONS THAT

3622
02:27:06,800 --> 02:27:11,000
HAPPEN IN SCHOOLS, THAT MAYBE

3623
02:27:11,000 --> 02:27:12,000
UNDER DEVELOPMENTAL BUT I WANT

3624
02:27:12,000 --> 02:27:14,040
THE MAKE SURE WE GET EDUCATIONAL

3625
02:27:14,040 --> 02:27:19,880
INTERVENTIONS IN THERE TOO. WITH

3626
02:27:19,880 --> 02:27:22,960
MEDICAL DOES THAT IN THE

3627
02:27:22,960 --> 02:27:25,840
PHARMACOLOGICAL DOES THAT IS IT

3628
02:27:25,840 --> 02:27:29,840
PHYSICAL AND MENTAL HEALTH OR DO

3629
02:27:29,840 --> 02:27:32,840
WE NEED TO CALL OUT MENTAL

3630
02:27:32,840 --> 02:27:34,520
HEALTH THAT IS DIFFERENT FROM

3631
02:27:34,520 --> 02:27:39,000
BEHAVIORAL INTERVENTION BECAUSE

3632
02:27:39,000 --> 02:27:42,200
BEHAVIOR IS HOW SOMEONE IS

3633
02:27:42,200 --> 02:27:44,360
BEHAVING DOESN'T NECESSARILY

3634
02:27:44,360 --> 02:27:45,440
INDICATE THAT SOMEBODY HAS A

3635
02:27:45,440 --> 02:27:49,120
MENTAL HEALTH DISABILITY. IT MAY

3636
02:27:49,120 --> 02:27:50,440
BE BEHAVIOR AS A RESULT OF HOW

3637
02:27:50,440 --> 02:27:56,080
THEY COMMUNICATE. SO I WANTED TO

3638
02:27:56,080 --> 02:27:59,560
MAKE SURE WE ARE INCORPORATING

3639
02:27:59,560 --> 02:28:01,320
MENTAL HEALTH IN THIS QUESTION

3640
02:28:01,320 --> 02:28:02,600
AND INTERVENTIONS RELATESSED TO

3641
02:28:02,600 --> 02:28:04,040
MENTAL HEALTH.

3642
02:28:04,040 --> 02:28:06,160
>> MENTAL HEALTH IS IN THE

3643
02:28:06,160 --> 02:28:07,960
CHAPTER AS WELL AS EDUCATIONAL

3644
02:28:07,960 --> 02:28:11,000
INTERVENTIONS WHICH IN THE SLIDE

3645
02:28:11,000 --> 02:28:13,080
FOR BREVITY GOT INCLUDED UNDER

3646
02:28:13,080 --> 02:28:15,360
DEVELOPMENTAL. WE WILL MAKE SURE

3647
02:28:15,360 --> 02:28:19,200
THAT THOSE ARE THERE I KNOW THEY

3648
02:28:19,200 --> 02:28:20,280
ARE THERE BUT WE WILL MAKE SURE

3649
02:28:20,280 --> 02:28:22,840
IT IS CLEAR. BECAUSE THOSE ARE

3650
02:28:22,840 --> 02:28:25,320
IMPORTANT AREAS IN MENTAL HEALTH

3651
02:28:25,320 --> 02:28:26,080
CERTAINLY SOMETHING WE HAVE BEEN

3652
02:28:26,080 --> 02:28:28,080
HEARING ABOUT FROM THE PREVIOUS

3653
02:28:28,080 --> 02:28:29,880
IACC AND THIS IACC AND WE WANT

3654
02:28:29,880 --> 02:28:31,280
TO MAKE SURE THAT IS ADDRESSED. 

3655
02:28:31,280 --> 02:28:34,560
THANK YOU FOR THOSE COMMENTS.

3656
02:28:34,560 --> 02:28:37,400
JAYLEN.

3657
02:28:37,400 --> 02:28:39,240
>> THANK YOU, THERE'S SO
MANY

3658
02:28:39,240 --> 02:28:40,800
WONDERFUL COMMENTS TODAY. SO

3659
02:28:40,800 --> 02:28:43,240
MANY BRIGHT PEOPLE HERE. IT IS

3660
02:28:43,240 --> 02:28:45,440
VERY REASSURING TO HEAR THIS

3661
02:28:45,440 --> 02:28:49,080
MANY WONDERFUL VOICES IN GIVING

3662
02:28:49,080 --> 02:28:52,520
INSIGHTS. I WONDER TOO ABOUT

3663
02:28:52,520 --> 02:28:54,440
SOME OF THE THINGS WITH

3664
02:28:54,440 --> 02:28:57,120
INTERVENTIONS THAT SOMETIMES WE

3665
02:28:57,120 --> 02:28:58,640
DON'T INCLUDE. I WONDER ABOUT

3666
02:28:58,640 --> 02:29:00,000
THE FAMILIES, IF YOU HAVE

3667
02:29:00,000 --> 02:29:01,200
MENTIONED THIS EARLIER I HAD TO

3668
02:29:01,200 --> 02:29:06,240
STEP AWAY FOR A MOMENT, I HAD A

3669
02:29:06,240 --> 02:29:08,720
SITUATION HERE. BUT FAMILIES, IF

3670
02:29:08,720 --> 02:29:13,360
SOMEONE IS NOT LIVING IN A

3671
02:29:13,360 --> 02:29:15,720
HEALTHY SITUATION WITH PARENTS

3672
02:29:15,720 --> 02:29:17,360
THAT CAN COPE, KNOW HOW TO COPE,

3673
02:29:17,360 --> 02:29:19,960
WHAT YOU ARE DOING AND

3674
02:29:19,960 --> 02:29:22,440
INTERVENTIONS THAT CAN HELP

3675
02:29:22,440 --> 02:29:25,160
SIBLINGS BECAUSE IF THERE IS

3676
02:29:25,160 --> 02:29:27,840
TENSION BETWEEN SIBLINGS, EVEN

3677
02:29:27,840 --> 02:29:29,240
IN THE MOST I DON'T KNOW IF

3678
02:29:29,240 --> 02:29:32,040
THERE IS A TYPICAL FAMILY OUT OF

3679
02:29:32,040 --> 02:29:35,400
COUNTRY THOUGH. EVERYBODY HAS A

3680
02:29:35,400 --> 02:29:38,080
DYNAMIC. SOMETIMES I THINK THAT

3681
02:29:38,080 --> 02:29:39,520
DYNAMIC CAN BE EXACERBATED AND

3682
02:29:39,520 --> 02:29:42,680
BE MUCH MORE DRAMATIC VERY MUCH

3683
02:29:42,680 --> 02:29:45,880
TO THE POINT OF TRAUMA. IF WE

3684
02:29:45,880 --> 02:29:47,760
CAN LOOK AT INTERVENTIONS FOR

3685
02:29:47,760 --> 02:29:49,560
FAMILIES OR HOW WE CAN MAKE

3686
02:29:49,560 --> 02:29:51,880
THOSE THINGS AVAILABLE, THAT MAY

3687
02:29:51,880 --> 02:29:53,520
COME INTO TRAINING MORE

3688
02:29:53,520 --> 02:29:55,200
PROFESSIONALS THAT COULD COME IN

3689
02:29:55,200 --> 02:29:57,800
AND HELP FAMILIES LEARN HOW THEY

3690
02:29:57,800 --> 02:30:00,640
CAN COPE AND HOW EVERYONE CAN BE

3691
02:30:00,640 --> 02:30:02,520
PART OF A FAMILY AND HAVE

3692
02:30:02,520 --> 02:30:05,960
SUCCESS IN THEIR OWN WAY AND IN

3693
02:30:05,960 --> 02:30:07,880
SO DOING HELPING THE AUTISTIC

3694
02:30:07,880 --> 02:30:10,280
INDIVIDUAL HAVE A BETTER

3695
02:30:10,280 --> 02:30:12,080
ENVIRONMENT AS WELL, AS WELL AS

3696
02:30:12,080 --> 02:30:15,720
HAVING OTHER CITIZENS HAVE

3697
02:30:15,720 --> 02:30:17,120
GREATER SUPPORTS IN THEIR WELL

3698
02:30:17,120 --> 02:30:18,960
BEING.

3699
02:30:18,960 --> 02:30:21,960
>> THANK YOU, JAYLEN. WE
HAVE

3700
02:30:21,960 --> 02:30:24,160
CAREGIVER SUPPORTS IN QUESTION

3701
02:30:24,160 --> 02:30:25,840
FIVE. WE HAVE A SECTION THAT

3702
02:30:25,840 --> 02:30:27,560
WILL ADDRESS ALL THOSE, IT DOES

3703
02:30:27,560 --> 02:30:29,520
INCLUDE SIBLINGS SPECIFICALLY

3704
02:30:29,520 --> 02:30:33,040
NAMED SIBLINGS AS PART OF THAT,

3705
02:30:33,040 --> 02:30:33,920
DEFINITELY WANT TO TAKE THAT

3706
02:30:33,920 --> 02:30:35,440
INTO ACCOUNT BECAUSE THERE ARE A

3707
02:30:35,440 --> 02:30:39,040
LOT OF WAYS THAT WE CAN HELP THE

3708
02:30:39,040 --> 02:30:40,880
FAMILY SYSTEM TO BEST SUPPORT

3709
02:30:40,880 --> 02:30:45,480
SOMEONE ON THE SPECTRUM. NEXT WE

3710
02:30:45,480 --> 02:30:48,560
WILL GO TO STEVEN.

3711
02:30:48,560 --> 02:30:52,000
>> HI, THERE, THIS IS A
COMMENT

3712
02:30:52,000 --> 02:30:53,600
FROM SCOTT ROBERTSON. HE SAYS

3713
02:30:53,600 --> 02:30:55,560
ALSO THE UNMET NEEDS DISCUSSION

3714
02:30:55,560 --> 02:30:58,160
FITS INTO RELATED AREA. T NAMELY

3715
02:30:58,160 --> 02:30:59,520
THAT IT IS THE EFFORT TO

3716
02:30:59,520 --> 02:31:01,760
CLASSIFY PEOPLE WITH

3717
02:31:01,760 --> 02:31:03,800
DISABILITIES AS A MEDICALLY

3718
02:31:03,800 --> 02:31:04,600
UNDERSERVED POPULATION GROUP

3719
02:31:04,600 --> 02:31:07,800
LIKE OTHER PEOPLE WITH OTHER

3720
02:31:07,800 --> 02:31:08,840
DISABILITIES, OTHER ARE

3721
02:31:08,840 --> 02:31:10,800
CERTAINLY MEDICALLY UNDERSERVED

3722
02:31:10,800 --> 02:31:12,480
AUTISTIC CHILDREN ADOLESCENTS

3723
02:31:12,480 --> 02:31:14,200
AND ADULTS FACE MAJOR BARRIERS

3724
02:31:14,200 --> 02:31:16,840
TO ACCESSING HEALTHCARE IN HUMAN

3725
02:31:16,840 --> 02:31:21,040
SERVICES AND SUPPORTS TO HELP

3726
02:31:21,040 --> 02:31:22,360
FOSTER HEALTH AND WELLNESS. 

3727
02:31:22,360 --> 02:31:24,160
THIS IS PARTIALLY COVERED IN

3728
02:31:24,160 --> 02:31:25,640
QUESTION 6 I THINK.

3729
02:31:25,640 --> 02:31:28,200
>> THANK YOU FOR THAT
COMMENT,

3730
02:31:28,200 --> 02:31:30,040
SCOTT. AND WE DID MAKE AN EFFORT

3731
02:31:30,040 --> 02:31:35,360
TO TALK ABOUT THAT ISSUE OF THE

3732
02:31:35,360 --> 02:31:36,360
PEOPLE ON THE AUTISM SPECTRUM

3733
02:31:36,360 --> 02:31:38,800
BEING PART OF THE DISPARITY

3734
02:31:38,800 --> 02:31:40,400
POPULATION IN THEMSELVES. AND

3735
02:31:40,400 --> 02:31:41,840
THAT IS IN THIS NEW SECTION THAT

3736
02:31:41,840 --> 02:31:43,640
WILL BE TALKING ABOUT TOMORROW

3737
02:31:43,640 --> 02:31:46,680
THAT IS ON EQUITY AND

3738
02:31:46,680 --> 02:31:48,080
DISPARITIES. BUT WE KNOW THE

3739
02:31:48,080 --> 02:31:49,080
NATIONAL COUNCIL ON DISABILITY

3740
02:31:49,080 --> 02:31:50,520
FOR EXAMPLE IN THEIR HEALTH

3741
02:31:50,520 --> 02:31:51,640
EQUITY FRAMEWORK TALKED ABOUT

3742
02:31:51,640 --> 02:31:54,880
PEOPLE WITH DISABILITIES AS

3743
02:31:54,880 --> 02:31:56,680
BEING CAMPAIGNING TO HAVE THAT

3744
02:31:56,680 --> 02:31:58,880
CREATED AS AN OFFICIAL HEALTH

3745
02:31:58,880 --> 02:32:00,440
DISPARITY POPULATION SO AUTISM

3746
02:32:00,440 --> 02:32:01,160
WOULD FIT WITHIN THAT AND WE

3747
02:32:01,160 --> 02:32:02,720
WANTED TO MAKE SURE THAT THAT IS

3748
02:32:02,720 --> 02:32:06,000
MENTIONED IN THE STRATEGIC PLAN.

3749
02:32:06,000 --> 02:32:07,960
HIGHLIGHT IT ALONG WITH SOME OF

3750
02:32:07,960 --> 02:32:09,680
THE OTHER DISPARITY AND EQUITY

3751
02:32:09,680 --> 02:32:11,320
ISSUES THAT WE ARE LOOKING AT.

3752
02:32:11,320 --> 02:32:15,520
THANK YOU FOR SHARING THAT. 

3753
02:32:15,520 --> 02:32:18,280
DIANA GARCIA.

3754
02:32:18,280 --> 02:32:22,040
>> HI, GOOD AFTERNOON. I
WANTED

3755
02:32:22,040 --> 02:32:23,480
TO MAKE A COMMENT AROUND

3756
02:32:23,480 --> 02:32:26,560
INTERVENTIONS IN THE CLASSROOM

3757
02:32:26,560 --> 02:32:28,480
AND FAMILY MEDIATED

3758
02:32:28,480 --> 02:32:29,520
INTERVENTIONS. I WOULD LIKE TO

3759
02:32:29,520 --> 02:32:33,720
SEE EMPHASIS ON THE PIECE AROUND

3760
02:32:33,720 --> 02:32:35,400
CULTURALLY LINGUISTICALLY

3761
02:32:35,400 --> 02:32:38,040
APPROPRIATE INTERVENTIONS. IN

3762
02:32:38,040 --> 02:32:39,840
THOSE TWO SECTIONS IN

3763
02:32:39,840 --> 02:32:40,960
PARTICULAR, THERE IS NO MENTION

3764
02:32:40,960 --> 02:32:44,840
OF LINGUISTICALLY APPROPRIATE

3765
02:32:44,840 --> 02:32:46,920
INTERVENTIONS. FACTORING IN

3766
02:32:46,920 --> 02:32:52,360
CULTURE OF THE FAMILY. THANK YOU

3767
02:32:52,360 --> 02:32:55,640
FOR THAT COMMENT. YOU CAN LOOK

3768
02:32:55,640 --> 02:32:59,080
INTO THAT. THAT IS SOMETHING

3769
02:32:59,080 --> 02:33:02,440
THAT IS WE WANT TO WEAVE IN

3770
02:33:02,440 --> 02:33:03,320
THROUGHOUT VEG PLAN, SO IT DOES

3771
02:33:03,320 --> 02:33:05,000
BELONG IN HERE, IF IT IS NOT

3772
02:33:05,000 --> 02:33:06,040
THERE WE CAN PUT IT IN OR

3773
02:33:06,040 --> 02:33:07,720
EMPHASIZE IT MORE IF IT IS

3774
02:33:07,720 --> 02:33:08,880
ALREADY MENTIONED BUT MAYBE NOT

3775
02:33:08,880 --> 02:33:13,920
HIGHLIGHTED.  SO STEVEN, DO YOU

3776
02:33:13,920 --> 02:33:17,200
HAVE ANOTHER COMMENT?

3777
02:33:17,200 --> 02:33:22,560
>> NOT AT THIS TIME.

3778
02:33:22,560 --> 02:33:25,080
>> SORRY, THOUGHT YOU HAD
A HAND

3779
02:33:25,080 --> 02:33:28,320
RAISED.  ANY OTHER QUESTIONS OR

3780
02:33:28,320 --> 02:33:31,680
COMMENTS ON THIS SECTION? ANYONE

3781
02:33:31,680 --> 02:33:35,160
OUT THERE THAT IS WORKING ON

3782
02:33:35,160 --> 02:33:39,120
INTERVENTIONS OR MANAGES A

3783
02:33:39,120 --> 02:33:40,960
PORTFOLIO OF EFFORTS IN THE AREA

3784
02:33:40,960 --> 02:33:43,520
OF INTERVENTIONS THAT YOU WANT

3785
02:33:43,520 --> 02:33:48,640
TO GIVE MORE COMMENTS TO MAKE ON

3786
02:33:48,640 --> 02:33:49,000
THIS?

3787
02:33:49,000 --> 02:33:53,240
>> SUSAN, NICOLE. I DON'T
HAVE

3788
02:33:53,240 --> 02:33:55,240
ANYTHING TO ADD AGAIN, THIS WELL

3789
02:33:55,240 --> 02:33:56,640
COVERS THE TYPES OF PROJECTS

3790
02:33:56,640 --> 02:33:57,400
THAT ARE FUNDED IN OUR

3791
02:33:57,400 --> 02:34:00,400
PORTFOLIO.

3792
02:34:00,400 --> 02:34:03,400
>> THANK YOU.

3793
02:34:03,400 --> 02:34:06,920
>> JENNIFER JOHNSON,
ANOTHER

3794
02:34:06,920 --> 02:34:08,280
POTENTIAL INTERVENTION WONDERING

3795
02:34:08,280 --> 02:34:10,920
IF LISTED IN THIS SECTION. AS

3796
02:34:10,920 --> 02:34:13,720
PEER TO PEER INTERVENTIONS, PEER

3797
02:34:13,720 --> 02:34:17,720
TO SPEAR SUPPORT IS INTERVENTION

3798
02:34:17,720 --> 02:34:19,800
AND RESEARCH BEING DONE ON THAT.

3799
02:34:19,800 --> 02:34:23,000
>> I THINK IT IS THERE. IT
IS --

3800
02:34:23,000 --> 02:34:24,240
I THINK IT IS IN THERE SOMEPLACE

3801
02:34:24,240 --> 02:34:27,280
SO WE WILL MAKE SURE THAT THAT

3802
02:34:27,280 --> 02:34:30,560
IS MENTIONED. THAT IS ANOTHER

3803
02:34:30,560 --> 02:34:35,080
IMPORTANT CAT GORE. ADDITIONAL

3804
02:34:35,080 --> 02:34:35,440
COMMENTS?

3805
02:34:35,440 --> 02:34:38,840
>> SUSAN, DO WE HAVE
ANYTHING IN

3806
02:34:38,840 --> 02:34:41,720
REGARD TO NAVIGATING INSURANCE

3807
02:34:41,720 --> 02:34:45,920
MEDICARE OR MEDICAID? Z A FAMILY

3808
02:34:45,920 --> 02:34:47,200
INTERVENTION TOOL?

3809
02:34:47,200 --> 02:34:51,560
>> KIND OF GOES WITH
SYSTEMS

3810
02:34:51,560 --> 02:34:51,840
NAVIGATION.

3811
02:34:51,840 --> 02:34:54,080
>> IN CHAPTER 5 WE TRIED
TO

3812
02:34:54,080 --> 02:34:56,520
INCLUDE SYSTEMS NAVIGATION BUT

3813
02:34:56,520 --> 02:34:58,600
ACTUALLY IF YOU HAVE ANY -- I

3814
02:34:58,600 --> 02:34:59,640
KNOW THAT YOU HAVE PROBABLY WAY

3815
02:34:59,640 --> 02:35:01,040
TOO MANY REFERENCES BUT IF YOU

3816
02:35:01,040 --> 02:35:02,280
HAVE ANY KEY REFERENCES YOU

3817
02:35:02,280 --> 02:35:04,840
MIGHT WANT TO SHARE ON THAT WITH

3818
02:35:04,840 --> 02:35:06,440
US THAT WOULD HELP US BECAUSE

3819
02:35:06,440 --> 02:35:07,360
THAT SOMETHING THAT WOULD BE NEW

3820
02:35:07,360 --> 02:35:10,200
IN THE PLAN THIS TIME. SO THAT

3821
02:35:10,200 --> 02:35:14,440
WOULD BE HELPFUL IF IF YOU HAVE

3822
02:35:14,440 --> 02:35:15,440
ANYTHING ON SYSTEMS NAVIGATION

3823
02:35:15,440 --> 02:35:15,840
THAT YOU COULD --

3824
02:35:15,840 --> 02:35:17,320
>> HAPPY TO GET THOSE OUT
TO

3825
02:35:17,320 --> 02:35:17,800
YOU.

3826
02:35:17,800 --> 02:35:19,960
>> THANKS, GREAT. WE CAN
MAKE

3827
02:35:19,960 --> 02:35:21,960
SURE THAT WE HAVE -- TRY TO

3828
02:35:21,960 --> 02:35:24,040
WRITE AN ADEQUATE SECTION ON

3829
02:35:24,040 --> 02:35:25,120
THAT. ALICE, DO YOU HAVE A

3830
02:35:25,120 --> 02:35:27,560
COMMENT? ?

3831
02:35:27,560 --> 02:35:29,800
>> I'M NOT SURE IF THIS
GOES IN

3832
02:35:29,800 --> 02:35:34,640
THIS SECTION BUT I WONDER ABOUT

3833
02:35:34,640 --> 02:35:37,000
WHERE WE HAVE EVIDENCE BASE FOR

3834
02:35:37,000 --> 02:35:41,200
INTERVENTIONS ACROSS ALL THESE

3835
02:35:41,200 --> 02:35:42,760
DOMAINS JUST RESEARCH ON

3836
02:35:42,760 --> 02:35:45,280
SPEEDING UP DISSEMINATION SO

3837
02:35:45,280 --> 02:35:47,200
BECAUSE I DO FEEL LIKE THERE ARE

3838
02:35:47,200 --> 02:35:48,640
A LOT OF EVIDENCE BASED

3839
02:35:48,640 --> 02:35:50,320
INTERVENTIONS THAT ARE JUST

3840
02:35:50,320 --> 02:35:51,800
IGNORED IN A LOT OF COMMUNITIES

3841
02:35:51,800 --> 02:35:56,080
AND THAT ALSO RELATES TO HEALTH

3842
02:35:56,080 --> 02:35:58,560
DISPARITIES. I WONDER IF

3843
02:35:58,560 --> 02:35:59,480
DISSEMINATION GIVEN THE INTEREST

3844
02:35:59,480 --> 02:36:02,560
IN THIS AREA NOW MIGHT NOT BE

3845
02:36:02,560 --> 02:36:03,360
WORTH MENTIONING HERE.

3846
02:36:03,360 --> 02:36:05,680
>> I THINK WE CAN FIT THAT
IN

3847
02:36:05,680 --> 02:36:08,040
WITH RESEARCH AND POLICY ISSUES 

3848
02:36:08,040 --> 02:36:10,320
ARE THERE GREAT EXAMPLES THAT

3849
02:36:10,320 --> 02:36:12,720
YOU HAVE OF DISSEMINATION

3850
02:36:12,720 --> 02:36:14,280
STRATEGIES OR EFFORTS THAT ARE

3851
02:36:14,280 --> 02:36:15,400
OUT THERE THAT ARE HELPING

3852
02:36:15,400 --> 02:36:18,080
PEOPLE?

3853
02:36:18,080 --> 02:36:19,560
>> I CAN GET BACK TO YOU.

3854
02:36:19,560 --> 02:36:21,280
>> THINK ABOUT IT AND LET
US

3855
02:36:21,280 --> 02:36:22,720
KNOW IF YOU HAVE ANY EXAMPLES

3856
02:36:22,720 --> 02:36:23,720
BUT WE CAN FIT THAT INTO THE

3857
02:36:23,720 --> 02:36:27,040
RESEARCH AND POLICY SECTION.

3858
02:36:27,040 --> 02:36:37,560
>> THANK YOU. OTHER
COMMENTS?

3859
02:36:38,720 --> 02:36:39,040
SCOTT?

3860
02:36:39,040 --> 02:36:41,560
>> SUSAN, I WANT TO
MENTION

3861
02:36:41,560 --> 02:36:44,440
RELATED TO WHAT WAS SHARED ABOUT

3862
02:36:44,440 --> 02:36:45,640
PEER SUPPORTS IS I DON'T KNOW

3863
02:36:45,640 --> 02:36:47,400
WHETHER YOU ARE AWARE MAYBE YOU

3864
02:36:47,400 --> 02:36:50,720
CAN GO INTO THE PLAN PEER

3865
02:36:50,720 --> 02:36:52,960
SUPPORTS AS ONE EXAMPLE OUT

3866
02:36:52,960 --> 02:36:56,720
THERE, IS PHILADELPHIA HAS A

3867
02:36:56,720 --> 02:37:00,680
PEER SPECIALIST PROGRAM THEY

3868
02:37:00,680 --> 02:37:02,200
SUPPORT EDUCATION AND TRAINING

3869
02:37:02,200 --> 02:37:03,920
OPPORTUNITIES FOR AUTISTIC

3870
02:37:03,920 --> 02:37:05,480
ADULTS TO SERVE AS PEER

3871
02:37:05,480 --> 02:37:06,920
SPECIALISTS FOR FELLOW AUTISTIC

3872
02:37:06,920 --> 02:37:11,560
PEOPLE FOR NAVIGATING SYSTEMS

3873
02:37:11,560 --> 02:37:12,720
SERVICES, EDUCATION, WORKPLACE,

3874
02:37:12,720 --> 02:37:18,680
THEY HAVE BEEN TRYING TO TAKE IT

3875
02:37:18,680 --> 02:37:20,120
STATEWIDE, TO SUPPORT AUTISTIC

3876
02:37:20,120 --> 02:37:21,360
ADOLESCENTS AND ADULTS SO WHEN I

3877
02:37:21,360 --> 02:37:22,920
LOOK IT UP THE PERSONS THEY

3878
02:37:22,920 --> 02:37:25,000
SUPPORT THROUGH THE PROGRAM MUST

3879
02:37:25,000 --> 02:37:30,120
BE 14 YEARS OLD, AND QUALIFY FOR

3880
02:37:30,120 --> 02:37:32,120
CBH SWITCHES THERE INSURANCE

3881
02:37:32,120 --> 02:37:34,320
PROVIDER SLASH MEDICAID AND HAVE

3882
02:37:34,320 --> 02:37:36,360
AUTISM DIAGNOSIS IN

3883
02:37:36,360 --> 02:37:37,840
PHILADELPHIA. THAT IS AN EXAMPLE

3884
02:37:37,840 --> 02:37:39,360
OF HAVING PEER SUPPORTS THAT

3885
02:37:39,360 --> 02:37:41,280
COULD BE HELPFUL FOR THE SYSTEMS

3886
02:37:41,280 --> 02:37:42,840
NAVIGATION CONNECTING TO

3887
02:37:42,840 --> 02:37:45,040
SUPPORTS AND SERVICES, AGAIN TO

3888
02:37:45,040 --> 02:37:49,040
WORK SCHOOL, ET CETERA.  JUST

3889
02:37:49,040 --> 02:37:50,160
LIKE COMMUNITY BASED

3890
02:37:50,160 --> 02:37:51,240
PARTICIPATORY RESEARCH GOOD

3891
02:37:51,240 --> 02:37:52,160
EXAMPLE TO FOLLOW YOU ARE

3892
02:37:52,160 --> 02:37:53,880
SUPPORTING EDUCATION AND

3893
02:37:53,880 --> 02:37:56,040
TRAINING OF AUTISTIC PEOPLE TO

3894
02:37:56,040 --> 02:37:59,680
SUPPORT FELLOW AUTISTIC PEOPLE

3895
02:37:59,680 --> 02:38:02,000
AND MAYBE SOME CASES TO SUPPORT

3896
02:38:02,000 --> 02:38:05,520
BROADER FAMILIES TOO BUT HAVE --

3897
02:38:05,520 --> 02:38:07,280
I THIS I THAT IS THE ONLY

3898
02:38:07,280 --> 02:38:09,240
EXAMPLE I THINK UNLESS ANYONE

3899
02:38:09,240 --> 02:38:10,280
NOSE OF OTHERS IN THE UNITED

3900
02:38:10,280 --> 02:38:11,960
STATES WHERE FOLKS ARE TRAINING

3901
02:38:11,960 --> 02:38:13,680
AUTISTIC ADULTS AND REALIZING WE

3902
02:38:13,680 --> 02:38:15,640
CAN PLAY A VALUABLE ROLE IN

3903
02:38:15,640 --> 02:38:16,680
SUPPORTING FELLOW AUTISTIC

3904
02:38:16,680 --> 02:38:21,000
PEOPLE INCLUDING ADOLESCENTS AND

3905
02:38:21,000 --> 02:38:23,960
ADULTS INCLUDING WHEN FOLKS ARE

3906
02:38:23,960 --> 02:38:26,480
JUST RECENTLY AFTER DIAGNOSIS

3907
02:38:26,480 --> 02:38:29,080
AND FOR GENERAL SUPPORT AND

3908
02:38:29,080 --> 02:38:31,120
SERVICES TO -- WE HAD MORE

3909
02:38:31,120 --> 02:38:33,800
ADVANCEMENT IN THAT PEER SUPPORT

3910
02:38:33,800 --> 02:38:36,920
SPECIALIST AREA IN MENTAL HEALTH

3911
02:38:36,920 --> 02:38:38,520
SPACE, SO ANOTHER IF YOU WANT TO

3912
02:38:38,520 --> 02:38:40,360
KNOW BROADER LITERATURE ON THAT,

3913
02:38:40,360 --> 02:38:43,280
THAT IS WHERE WHEN WE CREATED

3914
02:38:43,280 --> 02:38:46,680
THAT COMMUNITY PEER OFFICE AN

3915
02:38:46,680 --> 02:38:49,560
PEER SPECIALIST IN PHILADELPHIA

3916
02:38:49,560 --> 02:38:51,000
TO SUPPORT FELLOW AUTISTIC

3917
02:38:51,000 --> 02:38:52,480
PEOPLE, THEY BASE IT OFF OF HOW

3918
02:38:52,480 --> 02:38:54,080
THAT IS HAPPENING FOR MANY

3919
02:38:54,080 --> 02:38:55,400
DECADES IN THE MENTAL HEALTH

3920
02:38:55,400 --> 02:38:58,200
COMMUNITY ACROSS THE UNITED

3921
02:38:58,200 --> 02:39:02,480
STATES TO HELP EDUCATE AND TRAIN

3922
02:39:02,480 --> 02:39:05,280
SUPPORT SKILL DEVELOPMENT FOR

3923
02:39:05,280 --> 02:39:06,760
FOLKS WITH MENTAL HEALTH

3924
02:39:06,760 --> 02:39:08,520
CONDITIONS TO HELP EMPOWER

3925
02:39:08,520 --> 02:39:12,120
FELLOW FOLKS WITH MENTAL HEALTH

3926
02:39:12,120 --> 02:39:13,640
CONDITIONS TO SUPPORT HEALTH AND

3927
02:39:13,640 --> 02:39:16,240
WELLNESS AND QUALITY OF LIFE AND

3928
02:39:16,240 --> 02:39:20,120
HELP SUPPORTS AND SERVICES.

3929
02:39:20,120 --> 02:39:21,800
>> IF YOU HAVE A WEBSITE
IF YOU

3930
02:39:21,800 --> 02:39:23,400
CAN PUT MITT THE CHAT OR EMAIL

3931
02:39:23,400 --> 02:39:24,760
IT TO ME FOR THE TEAM. IF YOU

3932
02:39:24,760 --> 02:39:26,200
HAVE REFERENCES FOR ANYTHING

3933
02:39:26,200 --> 02:39:27,640
ELSE JUST SEND THEM OUR WAY AND

3934
02:39:27,640 --> 02:39:31,160
WE WILL MAKE SURE THE TEAM HAS

3935
02:39:31,160 --> 02:39:31,360
THOSE.

3936
02:39:31,360 --> 02:39:34,280
>> I WILL PUT IN THE CHAT
FOR

3937
02:39:34,280 --> 02:39:38,280
Y'ALL. OTHER COMMENTS?

3938
02:39:38,280 --> 02:39:41,480
>> THIS IS NICOLE, THIS

3939
02:39:41,480 --> 02:39:42,600
SOMETHING I WAS THINKING ABOUT

3940
02:39:42,600 --> 02:39:44,000
BASED ON WHAT WE HAVE BEEN

3941
02:39:44,000 --> 02:39:45,080
SEEING THE PAST COUPLE OF YEARS,

3942
02:39:45,080 --> 02:39:49,600
I DON'T KNOW IF THEY FIT IN

3943
02:39:49,600 --> 02:39:52,560
HERE, TELEMEDICINE, UTILIZING

3944
02:39:52,560 --> 02:39:54,480
THAT FOR INTERVENTION, DO WE

3945
02:39:54,480 --> 02:39:55,200
DESCRIBE THAT DURING THIS

3946
02:39:55,200 --> 02:39:56,760
CHAPTER? I CAN'T RECALL.

3947
02:39:56,760 --> 02:39:59,120
>> IT IS IN THE PLAN, I
DON'T

3948
02:39:59,120 --> 02:39:59,840
REMEMBER IF IT IS IN THIS

3949
02:39:59,840 --> 02:40:01,480
CHAPTER OR NOT, IT PROBABLY IS

3950
02:40:01,480 --> 02:40:03,280
AND PROBABLY IS IN MORE THAN ONE

3951
02:40:03,280 --> 02:40:04,640
PLACE. THAT IS A REALLY

3952
02:40:04,640 --> 02:40:06,080
IMPORTANT POINT BECAUSE

3953
02:40:06,080 --> 02:40:07,560
ESPECIALLY DURING COVID WE

3954
02:40:07,560 --> 02:40:10,120
STARTED ACCUMULATING SOME

3955
02:40:10,120 --> 02:40:11,680
EVIDENCE ABOUT THE EFFECTIVENESS

3956
02:40:11,680 --> 02:40:14,120
OF REMOTELY DELIVERING

3957
02:40:14,120 --> 02:40:15,800
INTERVENTIONS. SO THAT WOULD BE

3958
02:40:15,800 --> 02:40:17,920
WORTHWHILE TO MENTION ESPECIALLY

3959
02:40:17,920 --> 02:40:19,480
IF THERE HAVE BEEN STUDIES THAT

3960
02:40:19,480 --> 02:40:22,800
SUGGESTED THAT THIS IS VALID WAY

3961
02:40:22,800 --> 02:40:24,680
TO DELIVERNA COULD EXPAND

3962
02:40:24,680 --> 02:40:26,040
CAPACITY TO DELIVER TO MORE

3963
02:40:26,040 --> 02:40:36,560
PEOPLE AND MORE PLACES.  I SEE

3964
02:40:39,560 --> 02:40:40,600
COUPLE OF REFERENCE, SCOTT,

3965
02:40:40,600 --> 02:40:45,800
THANK YOU. IVA NOVA.

3966
02:40:45,800 --> 02:40:49,760
>> THIS IS IVA NOVA.  JUST

3967
02:40:49,760 --> 02:40:52,520
SPEAKING OF THE -- TRYING TO

3968
02:40:52,520 --> 02:40:54,200
MAKE SURE LIKE THE COVID

3969
02:40:54,200 --> 02:40:58,040
POLICIES ARE NOT HARMING

3970
02:40:58,040 --> 02:40:59,720
AUTISTICS OR CAUSING MORE

3971
02:40:59,720 --> 02:41:02,480
TRAUMA, ESPECIALLY AUTISTIC THAT

3972
02:41:02,480 --> 02:41:03,920
I HIGH SUPPORT NEEDS AN CAN'T

3973
02:41:03,920 --> 02:41:08,040
TELL YOU THEY DECEM DISTRESSED Y

3974
02:41:08,040 --> 02:41:11,280
HAVING ROUTINES GONE OR PUT

3975
02:41:11,280 --> 02:41:15,080
THROUGH SENSORY ISSUES. SO THAT

3976
02:41:15,080 --> 02:41:19,360
REQUIRE COMMENTS ABOUT COVID,

3977
02:41:19,360 --> 02:41:22,080
REGULATIONS AROUND THAT IS NOT

3978
02:41:22,080 --> 02:41:22,880
UNDUE HARM. THANK YOU.

3979
02:41:22,880 --> 02:41:24,840
>> THANK YOU. SO WE HAVE
SOME

3980
02:41:24,840 --> 02:41:26,240
INFORMATION ABOUT THAT IN A

3981
02:41:26,240 --> 02:41:27,720
SPECIAL SECTION ON COVID. I

3982
02:41:27,720 --> 02:41:30,840
DON'T KNOW IF -- I KNOW WE HAD

3983
02:41:30,840 --> 02:41:31,880
SOMETHING ABOUT FOR EXAMPLE

3984
02:41:31,880 --> 02:41:33,360
DIFFICULTY FOR SOME PEOPLE

3985
02:41:33,360 --> 02:41:35,800
WEARING MASKS AND SOME THINGS

3986
02:41:35,800 --> 02:41:37,160
LIKE THAT BUT WE CAN TAKE NOTE

3987
02:41:37,160 --> 02:41:39,120
OF THAT FOR THE COVID SECTION

3988
02:41:39,120 --> 02:41:39,720
AND WHETHER HE TALK MORE ABOUT

3989
02:41:39,720 --> 02:41:42,000
THAT TOMORROW.

3990
02:41:42,000 --> 02:41:44,040
>> THANK YOU. OF COURSE.
OTHER

3991
02:41:44,040 --> 02:41:54,320
COMMENTS? LAUREN.

3992
02:41:55,600 --> 02:41:57,920
>> AGREE WITH A COMMENT ON

3993
02:41:57,920 --> 02:41:59,240
TELEHEALTH GOING THE TO RAISE

3994
02:41:59,240 --> 02:42:01,160
THAT AS WELL IN THE NEXT CHAPTER

3995
02:42:01,160 --> 02:42:03,080
AND THINK ABOUT ACCESS TO BOTH

3996
02:42:03,080 --> 02:42:05,520
INTERVENTIONS AND SERVICES AND

3997
02:42:05,520 --> 02:42:06,760
SUPPORTS THROUGH TELEHEALTH AND

3998
02:42:06,760 --> 02:42:08,360
OTHER VIRTUAL MECHANISMS AS WE

3999
02:42:08,360 --> 02:42:09,400
THINK ABOUT IMPROVING ACCESS TO

4000
02:42:09,400 --> 02:42:10,440
CARE.

4001
02:42:10,440 --> 02:42:13,040
>> THANK YOU. IF ANY OF
YOU ARE

4002
02:42:13,040 --> 02:42:15,320
AWARE OF NEW PAPERS THAT HAVE

4003
02:42:15,320 --> 02:42:18,240
COME OUT THAT SUPPORT TELEHEALTH

4004
02:42:18,240 --> 02:42:19,680
APPROACH ESPECIALLY THAT HAVE

4005
02:42:19,680 --> 02:42:24,760
BEEN DEVELOPED DURING THE COVID

4006
02:42:24,760 --> 02:42:26,880
PANDEMIC, PLEASE SEND THEM OUR

4007
02:42:26,880 --> 02:42:27,920
WAY AND WE HAVE USE THOSE AS

4008
02:42:27,920 --> 02:42:28,960
REFERENCES. THAT SHIFTED THE

4009
02:42:28,960 --> 02:42:32,720
PAST FEW YEARS. WE COULD TALK

4010
02:42:32,720 --> 02:42:33,560
ABOUT A LITTLE MORE IN THIS

4011
02:42:33,560 --> 02:42:41,240
PLAN.  ANYBODY ELSE? ALICE. 

4012
02:42:41,240 --> 02:42:43,400
>> I HAVE A QUICK THING I
WONDER

4013
02:42:43,400 --> 02:42:45,760
IF WE SHOULD ALSO MAKE SURE

4014
02:42:45,760 --> 02:42:48,400
TELEHEALTH GETS MENTIONED FOR

4015
02:42:48,400 --> 02:42:50,400
DIAGNOSIS OR EVEN SCREENING AND

4016
02:42:50,400 --> 02:42:51,280
DIAGNOSIS BECAUSE I FELT LIKE

4017
02:42:51,280 --> 02:42:52,640
THERE'S A NUMBER OF PAPERS

4018
02:42:52,640 --> 02:42:54,840
TALKING ABOUT REMOTE DIE

4019
02:42:54,840 --> 02:42:57,640
DIAGNOSIS BEING SUCCESSFUL.

4020
02:42:57,640 --> 02:42:59,400
>> IF YOU HAVE ANY ON HAND
IF

4021
02:42:59,400 --> 02:43:00,600
YOU CAN SEND THOSE TO US TOO

4022
02:43:00,600 --> 02:43:02,160
THAT WOULD BE GREAT.  I THINK

4023
02:43:02,160 --> 02:43:04,080
THAT WOULD BE IMPORTANT. I KNOW

4024
02:43:04,080 --> 02:43:06,240
I RECENTLY SAW ONE, I THINK THAT

4025
02:43:06,240 --> 02:43:09,480
WOULD BE GOOD TO BRING THAT UP. 

4026
02:43:09,480 --> 02:43:10,880
THAT IS ANOTHER THEME OF

4027
02:43:10,880 --> 02:43:12,760
INCLUDING MORE PEOPLE IN

4028
02:43:12,760 --> 02:43:15,120
PROVIDING ACCESS AND ALSO

4029
02:43:15,120 --> 02:43:20,120
HOPEFULLY ADDRESSING SOME OF THE

4030
02:43:20,120 --> 02:43:27,200
DISPARITIES P. ADDITIONAL

4031
02:43:27,200 --> 02:43:37,720
COMMENTS? SOUNDS LIKE MAYBE WE

4032
02:43:41,800 --> 02:43:43,000
HAVE MADE THE COMMENTS WE WANT

4033
02:43:43,000 --> 02:43:44,760
TO TODAY.  Y'ALL HAVE BEEN

4034
02:43:44,760 --> 02:43:47,080
EXTREMELY EFFICIENT AND JUST

4035
02:43:47,080 --> 02:43:50,360
DONE A GREAT JOB BRINGING UP

4036
02:43:50,360 --> 02:43:51,760
REALLY IMPORTANT POINTS AND

4037
02:43:51,760 --> 02:43:53,200
TOPICS AND THINGS WE WANT TO

4038
02:43:53,200 --> 02:43:54,840
MAKE SURE THAT WE BRING UP IN

4039
02:43:54,840 --> 02:43:56,520
THE PLAN. DINA.

4040
02:43:56,520 --> 02:43:58,560
>> DID I HEAR YOU
CORRECTLY, ARE

4041
02:43:58,560 --> 02:44:00,120
WE GOING TO ADDRESS DISPARITIES

4042
02:44:00,120 --> 02:44:00,920
TOMORROW?

4043
02:44:00,920 --> 02:44:01,520
>> YES.

4044
02:44:01,520 --> 02:44:04,320
>> OKAY. I HAVE A COMMENT
ABOUT

4045
02:44:04,320 --> 02:44:05,320
DISPARITIES BUT I WILL WAIT

4046
02:44:05,320 --> 02:44:08,120
UNTIL TOMORROW. THANK YOU.

4047
02:44:08,120 --> 02:44:10,320
>> UNLESS DIRECTLY ON

4048
02:44:10,320 --> 02:44:11,560
INTERVENTIONS, WE HAVE A SECTION

4049
02:44:11,560 --> 02:44:17,560
THAT IS ON THAT. SO WE CAN TALK

4050
02:44:17,560 --> 02:44:19,760
ABOUT THAT TOMORROW. YES Y'ALL

4051
02:44:19,760 --> 02:44:21,000
HAVE BEEN VERY EFFICIENT SO WE

4052
02:44:21,000 --> 02:44:24,760
ARE FINISHED EARLY FOR TODAY.

4053
02:44:24,760 --> 02:44:25,640
YOU HAVE DONE A GREAT JOB

4054
02:44:25,640 --> 02:44:28,160
SHARING THOUGHTS AND IDEAS AND I

4055
02:44:28,160 --> 02:44:29,360
HOPE EVERYONE FEELS LIKE THEY

4056
02:44:29,360 --> 02:44:30,160
HAD AN OPPORTUNITY TO COMMENT IF

4057
02:44:30,160 --> 02:44:31,720
YOU WANTED TO COMMENT AND

4058
02:44:31,720 --> 02:44:33,960
TOMORROW WE WILL DO THE SAME

4059
02:44:33,960 --> 02:44:35,400
THING, WE HAVE A FEW MORE TOPICS

4060
02:44:35,400 --> 02:44:37,440
BUT IF WE ARE EFFICIENTLY SHOULD

4061
02:44:37,440 --> 02:44:39,840
HAVE PLENTY OF TIME TO TALK

4062
02:44:39,840 --> 02:44:41,120
ABOUT EACH OF THOSE TOPICS. THIS

4063
02:44:41,120 --> 02:44:43,520
IS REALLY HELPFUL INPUT FOR OUR

4064
02:44:43,520 --> 02:44:45,640
TEAM IN TERMS OF GETTING

4065
02:44:45,640 --> 02:44:48,320
REVISIONS MADE TO THESE

4066
02:44:48,320 --> 02:44:50,840
DOCUMENTS. UNLESS THERE ARE ANY

4067
02:44:50,840 --> 02:44:52,520
ADDITIONAL QUESTIONS ARE THERE

4068
02:44:52,520 --> 02:44:53,320
ANY OTHER QUESTIONS ABOUT TODAY

4069
02:44:53,320 --> 02:44:55,360
AND WHAT WE HAVE DISCUSSED OR

4070
02:44:55,360 --> 02:44:58,360
WHAT IS HAPPENING TOMORROW? 

4071
02:44:58,360 --> 02:45:00,160
TOMORROW WE WILL BE GOING

4072
02:45:00,160 --> 02:45:03,040
THROUGH QUESTIONS 5, 6, 7 AND

4073
02:45:03,040 --> 02:45:07,000
THE 9 SECTIONS ON COVID

4074
02:45:07,000 --> 02:45:10,080
DISPARITIES SEX AND GENDER. I

4075
02:45:10,080 --> 02:45:11,280
WILL MAKE A MENTION OF SOME

4076
02:45:11,280 --> 02:45:12,960
OTHER PIECES THAT WILL BE IN THE

4077
02:45:12,960 --> 02:45:15,240
SURVEY SO THAT -- SO WE HAVE A

4078
02:45:15,240 --> 02:45:17,240
FEW MORE PIECES TOMORROW. I

4079
02:45:17,240 --> 02:45:18,800
THINK WE WILL STILL BE ABLE TO

4080
02:45:18,800 --> 02:45:24,880
FIT WELL WITHIN OUR TIME. SCOTT.

4081
02:45:24,880 --> 02:45:29,640
>> THANKS, SUSAN. QUICK

4082
02:45:29,640 --> 02:45:32,760
QUESTION. IF WE ALSO THINK OF

4083
02:45:32,760 --> 02:45:34,520
ANY OTHER RESOURCE OR OTHER

4084
02:45:34,520 --> 02:45:36,040
THINGS YOU CAN SITE OFFHAND CAN

4085
02:45:36,040 --> 02:45:38,720
WE JUST EMAIL THAT TO YOU?

4086
02:45:38,720 --> 02:45:41,280
>> YES YOU CAN. IF YOU ARE
ABLE

4087
02:45:41,280 --> 02:45:44,920
TO EMAIL THEM TO ME AND/OR C C

4088
02:45:44,920 --> 02:45:47,360
THE IACC TEAM THAT WOULD BE

4089
02:45:47,360 --> 02:45:49,480
GREAT TO MAKE SURE -- I CAN

4090
02:45:49,480 --> 02:45:50,560
FORWARD THINGS BUT JUST TO MAKE

4091
02:45:50,560 --> 02:45:52,280
SURE NOTHING IS MISSED, IT HELPS

4092
02:45:52,280 --> 02:45:53,400
TO COPY THEM AS WELL.

4093
02:45:53,400 --> 02:45:57,600
>> SO I MET YOU AS BEING
THE

4094
02:45:57,600 --> 02:45:58,760
BROADER YOU.

4095
02:45:58,760 --> 02:46:00,520
>> OR YOU CAN EMAIL IACC
TEAM

4096
02:46:00,520 --> 02:46:02,680
AND COPY ME. THAT WILL MAKE SURE

4097
02:46:02,680 --> 02:46:04,320
THAT IT GETS TO OUR TEAM BECAUSE

4098
02:46:04,320 --> 02:46:06,440
NOW WE -- AFTER THIS MEETING

4099
02:46:06,440 --> 02:46:07,880
ENDS TOMORROW WE WILL HAVE SOME

4100
02:46:07,880 --> 02:46:09,040
TIME TO CONTINUE MAKING

4101
02:46:09,040 --> 02:46:10,520
REVISIONS BASED ON WHAT WE HAVE

4102
02:46:10,520 --> 02:46:11,840
HEARD.

4103
02:46:11,840 --> 02:46:14,200
>> GREAT. THERE MAYBE A
FEW

4104
02:46:14,200 --> 02:46:15,720
OTHER -- I KNOW IF A COUPLE

4105
02:46:15,720 --> 02:46:18,240
OTHER CASES ALSO WITH EXECUTIVE

4106
02:46:18,240 --> 02:46:21,320
FUNCTION AND SENSORY MOTOR I

4107
02:46:21,320 --> 02:46:24,040
HAVE REFERENCES TO COUPLE OF KEY

4108
02:46:24,040 --> 02:46:26,520
REVIEW PAPERS THAT HAVE COME OUT

4109
02:46:26,520 --> 02:46:30,160
THAT WOULD BE HELPFUL IN SLIDING

4110
02:46:30,160 --> 02:46:31,120
FOR THE REFERENCES SEC OF THOSE

4111
02:46:31,120 --> 02:46:32,560
AREAS. 

4112
02:46:32,560 --> 02:46:34,800
>> THANK YOU. I APPRECIATE
THAT

4113
02:46:34,800 --> 02:46:36,240
EVERYONE IS ALSO SENSITIVE TO

4114
02:46:36,240 --> 02:46:41,160
THE FACT THAT WE ARE TRYING TO

4115
02:46:41,160 --> 02:46:42,360
BEND THESE TOPICS AND IT IS

4116
02:46:42,360 --> 02:46:43,640
NEVER PERFECT AND THERE'S CROSS

4117
02:46:43,640 --> 02:46:45,000
OVER BETWEEN THE TOPICS BUT AS

4118
02:46:45,000 --> 02:46:47,320
MUCH AS POSSIBLE WE ARE TRYING

4119
02:46:47,320 --> 02:46:49,360
TO PUT THEM IN CATEGORIES

4120
02:46:49,360 --> 02:46:51,160
BECAUSE LUMPED TOGETHER IS TOO

4121
02:46:51,160 --> 02:46:54,160
CONFUSING TO READ SO TRY TO MAKE

4122
02:46:54,160 --> 02:46:55,520
DISTINCTIONS BETWEEN THE GROUPS

4123
02:46:55,520 --> 02:46:57,840
BUT RECOGNIZE IN REAL LIFE THESE

4124
02:46:57,840 --> 02:46:58,920
THINGS OVERLAP WITH EACH OTHER. 

4125
02:46:58,920 --> 02:47:03,440
SO WE WILL DO OUR BEST TO MAKE

4126
02:47:03,440 --> 02:47:04,920
EVERYTHING CLEAR AND WE REALLY

4127
02:47:04,920 --> 02:47:08,000
THANK YOU TODAY FOR ALL OF YOUR

4128
02:47:08,000 --> 02:47:11,320
WORK ON THIS. WE LOOK FORWARD TO

4129
02:47:11,320 --> 02:47:12,640
SEEING YOU TOMORROW SO WE WILL

4130
02:47:12,640 --> 02:47:15,840
START AT ONE O'CLOCK. AND WITH

4131
02:47:15,840 --> 02:47:18,440
THAT I THINK THAT WE CAN END THE

4132
02:47:18,440 --> 02:47:19,640
MEETING FOR TODAY. THANK YOU,

4133
02:47:19,640 --> 02:47:21,000
EVERYONE FOR JOINING US AND WE

4134
02:47:21,000 --> 02:47:21,800
LOOK FORWARD TO SEEING YOU

4135
02:47:21,800 --> 02:47:25,680
TOMORROW. BYE-BYE.

4136
02:47:25,680 --> 02:47:27,520
>> THANK YOU, SUSAN AND
YOUR

4137
02:47:27,520 --> 02:47:30,400
COLLEAGUES FOR SPEARHEADING THIS

4138
02:47:30,400 --> 02:47:32,080
WORK GROUP MEETING FOR US TO

4139
02:47:32,080 --> 02:47:33,560
HAVE THIS ACTIVE DISCUSSION.  IT

4140
02:47:33,560 --> 02:47:35,400
WAS VERY PRODUCTIVE IN TERMS OF

4141
02:47:35,400 --> 02:47:37,120
THE IDEAS AND THOUGHTS THAT WERE

4142
02:47:37,120 --> 02:47:40,960
SHARED TO HELP ENHANCE THE

4143
02:47:40,960 --> 02:47:42,080
NARRATIVE ACROSS AREAS OF THE

4144
02:47:42,080 --> 02:47:43,080
STRATEGIC PLAN AND WHAT WE WILL

4145
02:47:43,080 --> 02:47:44,400
BE DISCUSSING FOR THE OTHER

4146
02:47:44,400 --> 02:47:45,240
THREE QUESTIONS TOMORROW. THANK

4147
02:47:45,240 --> 02:47:47,120
YOU VERY MUCH.

4148
02:47:47,120 --> 02:47:50,240
>> EXCELLENT. WE
APPRECIATE YOUR

4149
02:47:50,240 --> 02:47:51,680
COMMENTS. EVERYONE'S

4150
02:47:51,680 --> 02:47:52,720
CONTRIBUTIONS TO THE DISCUSSION

4151
02:47:52,720 --> 02:47:55,200
TODAY. 

4152
02:47:55,200 --> 02:47:56,160
>> THANK YOU.

4153
02:47:56,160 --> 02:47:58,240
>> THANK YOU.

4154
02:47:58,240 --> 02:48:08,440
>> BYE-BYE.