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 I WANT TO WELCOME 

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EVERYONE IN THE ROOM AND ONLINE 

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AND COMMITTEE MEMBERS AND 

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MEMBERS OF THE PUBLIC AND OTHERS

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LISTENING IN.

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IT'S A REAL PLEASURE TO OPEN 

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THIS MEETING OF THE INTERAGENCY 

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AUTISM COORDINATING COMMITTEE.

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MY NAME IS JOSHUA GORDON THE 

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DIRECTOR OF THE NATIONAL 

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INSTITUTE OF MENTAL HEALTH AND 

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CHAIR OF THE IACC.

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TO MY LEFT HERE IS DR. SUSAN 

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DANIELS WHO IS IS THE DIRECTOR 

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OF THE OFFICE OF NATIONAL AUTISM

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COORDINATOR AND THE NATIONAL 

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COORDINATOR FOR THE UNITED 

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STATES AND THE EXECUTIVE 

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SECRETARY OF THE IACC.

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WE WANT TO ACKNOWLEDGE IT'S 

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WONDERFUL TO SEE SO MANY FACES 

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IN THE ROOM AND ALSO SO MANY 

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FACES ON ZOOM.

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IF MEMBERS OF THE COMMITTEE 

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WOULD PLEASE WHO ARE ON ZOOM 

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WOULD PLEASE TURN THEIR CAMERAS 

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ON THAT WOULD BE HELPFUL AND THE

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ROOM CAMERAS.

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I WANT TO WELCOME TWO NEW 

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MEMBERS NO THE IACC RECENTLY 

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POINTED FOR THE HHS SECRETARY.

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FIRST DR. TOM FRAZIER.

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WOULD YOU LIKE TO SEE A FEW 

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WORDS TO INTRODUCE YOURSELF.

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>> TOM FRAZIER A CLINICAL 

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PSYCHOLOGIST PROFESSOR AT JOHN 

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CARROLL UNIVERSITY IN CLEVELAND 

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AND MY WIFE IS A BCBA AND I HAVE

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A 19-YEAR-OLD SON WITH AUTISM 

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AND INTELLECTUAL DISABILITY.

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>> THANK YOU VERY MUCH.

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WE WELCOME YOU AND LOOK FORWARD 

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TO YOUR MANY CONTRIBUTIONS TO 

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THE COMMITTEE.

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OUR NEXT NEW MEMBER IS 

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DR. CAMILLE PROCTOR WHO I 

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BELIEVE IS JOINING VIRTUALLY.

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WOULD YOU LIKE TO INTRODUCE 

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YOURSELF?

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IF YOU ARE SPEAKING WE CAN'T 

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HEAR YOU SO YOU NEED TO UNMUTE.

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WE'LL COME BACK TO MS. PROCTOR 

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LATER.

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NEXT I WANT TO DR. JANE SIMONI.

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SHE IS JOINING US TO REPRESENT 

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DR. LARRY TABAK THE ACTING 

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DIRECTOR OF THE NATIONAL 

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INSTITUTES OF HEALTH.

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WOULD YOU LIKE TO SAY WORDS TO 

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INDUCE YOURSELF.

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>> I'M PRIVILEGED TO BE
HERE AND

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I'M A CLINICAL PSYCHOLOGIST 

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FIRST YEAR FROM ACADEMIA IN THE 

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FEDERAL GOVERNMENT AND GLAD TO 

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BE HERE FOR PEOPLE OUTSIDE AND 

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INSIDE BETHESDA.

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>> THANK YOU VERY MUCH,
JANE.

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I ALSO WANT TO THANK DR. AIKLAND

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STEPPING DOWN AS THE DEPUTY 

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DIRECTOR OF NIH AND STEPPING 

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INTO HER NEW ROLE OF THE 

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DIRECTOR OF THE DIRECTOR OF 

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NURSING INSTITUTE AT NIH.

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AND MS. SKY BASK HAS 

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TRANSITIONED TO A NEW POSITION.

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MS. BARBARA ROLAND WILL AREN'T 

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THE INDIAN HEALTH SERVICES UNTIL

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A PERMANENT MEMBER IS NAMED.

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BARBARA WOULD YOU LIKE TO 

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INTRODUCE YOURSELF?

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LOOK LIKE WE DON'T HAVE HER YET 

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AND WE'LL HAVE HER INTRODUCE 

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HERSELF AT A LATER POINT.

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I WANT TO CONGRATULATE COMMITTEE

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MEMBERS ON THE ACCOMPLISH MANIES

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WE HAVE TO SHARE.

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DR. TAYLOR HAS BEEN APPOINTED AS

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THE CO-DIRECT OF THE 

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VANDERBILT-KENNEDY CENTER 

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UNIVERSITY CENTER FOR EXCELLENCE

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IN DEVELOPMENT DISABILITIES 

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EDUCATION RESEARCH SERVICE.

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CONGRATULATIONS ON THIS 

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PRESTIGIOUS APPOINTMENT.

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AND DR. CRAIG JOHNSON COMPLETED 

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HIS MASTER'S OF EDUCATION DEGREE

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IN SPECIAL POPULATIONS FROM THE 

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UNIVERSITY OF HOUSTON.

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CONGRATULATIONS TO YOU ON THAT 

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ACHIEVEMENT.

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FINALLY, I WANT TO CONGRATULATE 

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A SORT OF SPILLING THE BEANS 

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EARLIER SUSAN DANIELS OUR OWN 

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EXECUTIVE SECRETARY AS YOU KNOW 

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WAS NAMED NATIONAL AUTISM 

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CAREERED THIS PAST MAY.

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IT'S THE FIRST TAME WE'RE 

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MEETING SO I WANT TO TAKE A 

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MOMENT TO CONGRATULATE HER AND 

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SERVING SINCE JULY OF 2021.

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IT TAKES A LONG TIME SOMETIMES 

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TO GET THINGS DONE IN GOVERNMENT

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BUT WE MANAGE TO GET IT DONE.

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CONGRATULATIONS ON YOUR 

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APPOINTMENT ON THIS IMPORTANT 

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NEW ROLE.

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FINALLY IN A MOMENT OF 

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SELF-CONGRATULATION OR 

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CONGRATULATION FOR MANY WHO WORK

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IN THE BUILDING AND ON THE MAIN 

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CAMPUS OF NIH, I WANT TO SHARE 

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THIS IS THE NATIONAL INSTITUTE 

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OF MENTAL HEALTH'S 75th YEAR 

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FOUNDED AFTER 1949 WITH THE 

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RECOGNITION MENTAL ILLNESSES 

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WERE AFFLICTING MANY AMERICANS 

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AT THAT TIME ESPECIALLY THOSE 

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WHO RETURNED FROM WAR.

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WE HAVE A FULL YEAR OF EVENTS 

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PLANNED TO CELEBRATE THE 

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ACCOMPLISHMENTS AND ACHIEVEMENTS

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AND WHAT REMAINS TO BE DONE TO 

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HELP THOSE WITH MENTAL ILLNESSES

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OF ALL SORTS.

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I WANT TO COMMEND YOU TO VISIT 

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OUR WEB PAGE NIH.NIH

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NIH.NIH.gov/SEVENTYFIVEYEARS TO 

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FIND OUT MORE ABOUT THE EVENTS 

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WE HAVE PLANNED.

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TURNING TO TODAY'S AGENDA WE 

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HAVEFULLY INFORMATIVE AND 

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HOPEFULLY ENGAGING 

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PRESENTATIONS.

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WE'LL FIRST HEAR FROM THE 

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DEPARTMENT OF LABOR TO RECOGNIZE

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OCTOBER AS NATIONAL DISABILITY 

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EMPLOYMENT AWARENESS MONTH AND 

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HEAR AN UPDATE FROM OUR NEWLY 

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APPOINTED NATIONAL AUTISM 

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COORDINATOR AND HAVE A ROUND 

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ROBIN WITH MEMBERS FOLLOWED BY 

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THE IACC COMMITTEE BUSINESS.

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THIS AFTERNOON WE'LL HEAR 

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PRESENTATIONS ON THE TOPIC OF 

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MENTAL HEALTH AND AUTISM.

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WE'LL HAVE PRESENTATIONS ABOUT 

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MENTAL HEALTH RESEARCH AS WELL 

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AS MENTAL HEALTH SERVICES 

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AVAILABLE FOR INDIVIDUALS WITH 

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AUTISM WHO FREQUENTLY SUFFER 

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FROM CO-MORBIDITIES OF A NUMBER 

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OF DIFFERENT KINDS IN THE MENTAL

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HEALTH SPACE.

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WE'LL ALSO HEAR FROM A PANEL OF 

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INDIVIDUALS SHARED THE LIVED AND

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PROFESSIONAL EXPERIENCES WITH 

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MENTAL HEALTH IN THE CONTEXT OF 

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AUTISM.

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YESTERDAY OCTOBER 10 WAS WORLD 

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MENTAL HEALTH DAY AND MY 

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DAUGHTER'S BIRTHDAY.

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WE SHARE THE GOAL -- WORLD 

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MENTAL HEALTH DAY IS DESIGNATED 

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BY THE WORLD HEALTH ORGANIZATION

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AND WE SHARE THEIR GOAL OF 

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IMPROVING KNOWLEDGE, RAISING 

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AWARENESS AND DRIVING ACTION 

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THAT PROMOTE AND PROTECT 

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EVERYONE'S MENTAL HEALTH.

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I THINK IT'S SUITABLE TODAY IN 

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THE AFTERNOON WE'LL FOCUS ON THE

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MENTAL HEALTH OF INDIVIDUALS 

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WITH AUTISM.

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THAT'S IN WAY OF INTRODUCING THE

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MEETING.

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WELCOME EVERYONE AND TURN TO 

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SUSAN FOR OPENING REMARKS, ROLL 

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CALL, ETCETERA.

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SUSAN.

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>> THANK YOU SO MUCH.

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IT'S REALLY EXCITING TO WELCOME 

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YOU IN PERSON TO THIS MEETING.

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IT'S BEEN A COUPLE YEARS SINCE 

194
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THE IACC HAS BEEN ABLE TO MEET 

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IN PERSON AND IT'S THE FIRST 

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TIME FOR THIS PARTICULAR GROUP 

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TO BE MEETING IN PERSON AND WE 

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HAVE PEOPLE VIRTUALLY ON ZOOM 

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PARTICIPATING AND WELCOME TO OUR

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PUBLIC AUDIENCE.

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WE'RE EXCITED TO BE HERE AND 

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RECOGNIZING THE IMPORTANT TOPIC 

203
00:08:28,576 --> 00:08:31,079
OF MENTAL HEALTH AND WE'LL TALK 

204
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ABOUT NATIONAL DISABILITY 

205
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EMPLOYMENT AWARENESS MONTH BE 

206
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ADDRESSED BY THE U.S. DEPARTMENT

207
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OF LABOR TODAY.

208
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I'M GOING TO MAKE A FEW 

209
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HOUSEKEEPING ANNOUNCEMENTS FOR 

210
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PEOPLE WHO ARE ON ZOOM WE 

211
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ENCOURAGE YOU TO PARTICIPATE IN 

212
00:08:49,731 --> 00:08:50,231
THE MEETING.

213
00:08:50,231 --> 00:08:51,666
PLEASE RAISE YOUR HAND IN ZOOM.

214
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WE HAVE PEOPLE FROM OUR TEAM 

215
00:08:58,173 --> 00:08:59,741
WATCHING THE ZOOM CHANNEL AND 

216
00:08:59,741 --> 00:09:00,308
THEY'LL LET US KNOW WHEN 

217
00:09:00,308 --> 00:09:01,176
SOMEBODY WANTS TO SPEAK.

218
00:09:01,176 --> 00:09:04,479
WE ALSO WELCOME YOU TO PUT IN 

219
00:09:04,479 --> 00:09:08,383
THE MESSAGE TO SEND COMMENTS 

220
00:09:08,383 --> 00:09:12,520
HERE AS THE TITLE AND I'LL DUST 

221
00:09:12,520 --> 00:09:15,824
STAFF AT THE TABLE AND I HAVE 

222
00:09:15,824 --> 00:09:19,227
HELP WITH ZOOM AND KEEPING TRAM 

223
00:09:19,227 --> 00:09:20,962
OF CERTAIN THINGS IN THE MEETING

224
00:09:20,962 --> 00:09:24,466
AND STEVEN ISAACSON WHO WILL 

225
00:09:24,466 --> 00:09:26,034
READ ALOUD ANY COMMENTS IN THE 

226
00:09:26,034 --> 00:09:26,301
CHAT.

227
00:09:26,301 --> 00:09:29,604
BEHIND ME ON BOTH SIDES ARE THE 

228
00:09:29,604 --> 00:09:31,439
OFFICE OF NATIONAL AUTISM 

229
00:09:31,439 --> 00:09:32,707
COORDINATION STAFF AND THEY ARE 

230
00:09:32,707 --> 00:09:34,743
BEHIND THE SCENES HELPING TO 

231
00:09:34,743 --> 00:09:37,779
MAKE SURE THIS MEETING GOES 

232
00:09:37,779 --> 00:09:39,147
SMOOTHLY AS WELL AS OUR 

233
00:09:39,147 --> 00:09:40,849
CONTRACTOR ROSE LEE AND 

234
00:09:40,849 --> 00:09:44,486
ASSOCIATES AND THE NIH TEAM 

235
00:09:44,486 --> 00:09:52,327
HERE.

236
00:09:52,327 --> 00:09:54,729
I WILL TAKE A ROLL CALL SO THOSE

237
00:09:54,729 --> 00:09:57,165
WATCHING THROUGH NIH VIDEOCAST 

238
00:09:57,165 --> 00:09:58,867
WILL KNOW WHO'S HERE.

239
00:09:58,867 --> 00:10:05,407
FIRST JOSHUA GORDON.

240
00:10:05,407 --> 00:10:08,743
>> HERE.

241
00:10:08,743 --> 00:10:19,220
>> DI AN BIANCHI OR AMANDA

242
00:10:20,755 --> 00:10:20,955
COWELL.

243
00:10:20,955 --> 00:10:21,723
>> HERE.

244
00:10:21,723 --> 00:10:28,963
>> MITCHELL BERGER OR
ANITA 

245
00:10:28,963 --> 00:10:29,230
EVERETT.

246
00:10:29,230 --> 00:10:31,466
>> MITCHELL BURGER.

247
00:10:31,466 --> 00:10:38,006
>> TIFFANY FARCHIONE.

248
00:10:38,006 --> 00:10:41,476
>> FOOD AND DRUG
ADMINISTRATION.

249
00:10:41,476 --> 00:10:44,212
>> THANK YOU MARIA FRYER.

250
00:10:44,212 --> 00:10:44,646
?

251
00:10:44,646 --> 00:10:51,553
I THINK SHE'LL JOIN LATER.

252
00:10:51,553 --> 00:10:56,491
>> REBECCA ZUBAL FROM EPA
I 

253
00:10:56,491 --> 00:10:58,193
THINK WILL JOIN LATER.

254
00:10:58,193 --> 00:11:00,495
>> JENNIFER JOHNSON.

255
00:11:00,495 --> 00:11:04,833
>> HERE.

256
00:11:04,833 --> 00:11:06,267
>> FROM THE ADMINISTRATION
FROM 

257
00:11:06,267 --> 00:11:08,736
COMMUNITY LIVING.

258
00:11:08,736 --> 00:11:10,071
>> CHRISTINA HARDY.

259
00:11:10,071 --> 00:11:11,372
>> I'M HERE.

260
00:11:11,372 --> 00:11:21,816
>> FROM THE INSTITUTE OF 

261
00:11:22,450 --> 00:11:24,319
NATIONAL OF HEALTH.

262
00:11:24,319 --> 00:11:27,922
>> LEAH LOZIER.

263
00:11:27,922 --> 00:11:28,523
>> 

264
00:11:28,523 --> 00:11:30,191
>> HERE.

265
00:11:30,191 --> 00:11:31,326
>> ALISON MARVIN.

266
00:11:31,326 --> 00:11:35,430
>> HERE FROM SSA.

267
00:11:35,430 --> 00:11:37,966
>> MATTHEW MILLER OR SCOTT

268
00:11:37,966 --> 00:11:40,435
PATTERSON FROM THE VETERANS 

269
00:11:40,435 --> 00:11:40,802
ADMINISTRATION?

270
00:11:40,802 --> 00:11:50,078
>> KAMIL MYSTERY OR JUSTIN
MILLS

271
00:11:50,078 --> 00:11:55,250
FROM AAARQ.

272
00:11:55,250 --> 00:12:00,488
>> STEWARD SHEER RA.

273
00:12:00,488 --> 00:12:01,456
>> HERE.

274
00:12:01,456 --> 00:12:08,163
>> ROBIN SHILLHOP FROM
HRSA AND 

275
00:12:08,163 --> 00:12:09,864
CHP.

276
00:12:09,864 --> 00:12:11,499
>> THANK YOU.

277
00:12:11,499 --> 00:12:12,800
BARBARA ROLLAND.

278
00:12:12,800 --> 00:12:15,170
>> I'M THE MENTAL HEALTH
BRANCH 

279
00:12:15,170 --> 00:12:16,538
CHIEF FOR THE DEPARTMENT OF 

280
00:12:16,538 --> 00:12:17,739
BEHAVIORAL HEALTH AT IHS.

281
00:12:17,739 --> 00:12:18,206
THANK YOU.

282
00:12:18,206 --> 00:12:20,808
>> WELCOME TO THE
COMMITTEE, 

283
00:12:20,808 --> 00:12:21,042
BARBARA.

284
00:12:21,042 --> 00:12:22,544
GLAD TO HAVE YOU ON BOARD.

285
00:12:22,544 --> 00:12:23,011
>> THANK YOU.

286
00:12:23,011 --> 00:12:28,750
>> YES, WELCOME.

287
00:12:28,750 --> 00:12:35,523
JODY SUMERAKI FROM CENTERS FOR 

288
00:12:35,523 --> 00:12:38,726
MEDICAID AND MEDICARE SERVICES?

289
00:12:38,726 --> 00:12:44,499
DR. JAMES SIMMONE.

290
00:12:44,499 --> 00:12:45,466
WELCOME.

291
00:12:45,466 --> 00:12:46,467
REPRESENTING THE NIH OFFICE OF 

292
00:12:46,467 --> 00:12:48,503
THE DIRECTOR.

293
00:12:48,503 --> 00:12:49,237
JUDE IN COOPER.

294
00:12:49,237 --> 00:12:51,039
-- JUDITH COOPER.

295
00:12:51,039 --> 00:12:53,074
>> GOOD MORNING PRESENT
AND 

296
00:12:53,074 --> 00:12:54,776
REPRESENTING OUR DIRECTOR OF THE

297
00:12:54,776 --> 00:12:57,612
NATIONAL INSTITUTE ON DEAFNESS 

298
00:12:57,612 --> 00:12:58,413
AND OTHER COMMUNICATION 

299
00:12:58,413 --> 00:13:00,682
DISORDERS DEB TUCCI IS AWAY.

300
00:13:00,682 --> 00:13:04,852
>> THANK YOU.

301
00:13:04,852 --> 00:13:07,322
LARRY WEXLER.

302
00:13:07,322 --> 00:13:08,122
>> HERE.

303
00:13:08,122 --> 00:13:12,026
>> FROM THE DEPARTMENT OF 

304
00:13:12,026 --> 00:13:12,594
EDUCATION.

305
00:13:12,594 --> 00:13:13,361
NICOLE WILLIAMS.

306
00:13:13,361 --> 00:13:14,963
>> I'M WITH THE AUTISM
RESEARCH 

307
00:13:14,963 --> 00:13:15,196
PROGRAM.

308
00:13:15,196 --> 00:13:20,935
>> AT THE DEPARTMENT OF
DEFENSE.

309
00:13:20,935 --> 00:13:26,908
>> TARYN MACKENZIE
WILLIAMS OR 

310
00:13:26,908 --> 00:13:35,650
SCOTT ROBERTSON OR ANIF ACGESE.

311
00:13:35,650 --> 00:13:36,050
>> HERE.

312
00:13:36,050 --> 00:13:36,584
>> THANK YOU.

313
00:13:36,584 --> 00:13:38,653
>> AND FOR THE REST OF THE

314
00:13:38,653 --> 00:13:42,523
MEETING AFTER ANUPA'S REMARKS 

315
00:13:42,523 --> 00:13:43,825
THIS IS SCOTT FROM THE OFFICE OF

316
00:13:43,825 --> 00:13:45,493
DISABILITY AND EMPLOYMENT 

317
00:13:45,493 --> 00:13:45,727
POLICY.

318
00:13:45,727 --> 00:13:46,794
>> U.S. DEPARTMENT OF
LABOR 

319
00:13:46,794 --> 00:13:48,062
WE'RE LOOKING FORWARD TO HEARING

320
00:13:48,062 --> 00:13:48,863
FROM YOU LATER.

321
00:13:48,863 --> 00:13:51,833
>> RICHARD WOYCHIK OR
CINDY 

322
00:13:51,833 --> 00:13:52,100
LAWLER.

323
00:13:52,100 --> 00:13:55,536
>> THIS IS CINDY,
ALTERNATE FOR 

324
00:13:55,536 --> 00:14:00,475
RICK WOYCHIK NATIONAL INSTITUTE 

325
00:14:00,475 --> 00:14:03,978
OF ENVIRONMENTAL HEALTH 

326
00:14:03,978 --> 00:14:04,345
SCIENCES.

327
00:14:04,345 --> 00:14:08,716
>> MARIA MERCEDES AVILA?

328
00:14:08,716 --> 00:14:09,017
ALEX CARTER.

329
00:14:09,017 --> 00:14:12,620
>> HERE.

330
00:14:12,620 --> 00:14:13,254
>> THANK YOU.

331
00:14:13,254 --> 00:14:16,958
DO YOU WANT TO SAY WHERE YOUR 

332
00:14:16,958 --> 00:14:19,093
FROM?

333
00:14:19,093 --> 00:14:24,932
>> UNIVERSITY OF
MASSACHUSETTS 

334
00:14:24,932 --> 00:14:29,003
DEPARTMENT OF PSYCHOLOGY.

335
00:14:29,003 --> 00:14:35,209
>> AISHA  DICKERSON.

336
00:14:35,209 --> 00:14:39,347
>> HERE FROM JOHNS HOPKINS

337
00:14:39,347 --> 00:14:39,947
DEPARTMENT OF EPIDEMIOLOGY.

338
00:14:39,947 --> 00:14:41,749
>> THOMAS FRAZIER.

339
00:14:41,749 --> 00:14:42,850
>> HERE.

340
00:14:42,850 --> 00:14:45,520
>> DENA GASNER.

341
00:14:45,520 --> 00:14:48,256
>> SHE DIDN'T MAKE THE
ROUND 

342
00:14:48,256 --> 00:14:51,893
ROBIN BUT MY DISSERTATION 

343
00:14:51,893 --> 00:14:53,027
DEFENSE WAS ACCEPTED.

344
00:14:53,027 --> 00:14:59,233
>> CONGRATULATIONS.

345
00:14:59,233 --> 00:15:02,670
>> YES, CONGRATULATIONS, 

346
00:15:02,670 --> 00:15:05,973
DR. GASNER.

347
00:15:05,973 --> 00:15:16,384
>> MORENIKE GIWA ONAIWU.

348
00:15:18,686 --> 00:15:21,723
>> ALYCIS HALLADAY.

349
00:15:21,723 --> 00:15:23,324
>> ONLY A CERTAIN NUMBER
CAN BE 

350
00:15:23,324 --> 00:15:26,494
ON AT ONCE SO BE SURE TO TURN 

351
00:15:26,494 --> 00:15:27,395
YOURS OFF AFTER.

352
00:15:27,395 --> 00:15:29,130
>> CRAIG JOHNSON.

353
00:15:29,130 --> 00:15:30,665
>> I'M FROM CHANCE
FOUNDATION 

354
00:15:30,665 --> 00:15:31,499
FOR SPECIAL NEEDS INDIVIDUALS 

355
00:15:31,499 --> 00:15:31,833
AND FAMILIES.

356
00:15:31,833 --> 00:15:35,937
>> THANK YOU.

357
00:15:35,937 --> 00:15:39,807
YETTA MYRICK.

358
00:15:39,807 --> 00:15:41,576
>> I'M FROM D.C. AUTISM
PARENTS 

359
00:15:41,576 --> 00:15:43,411
AND I'M ALSO A PARENT.

360
00:15:43,411 --> 00:15:44,178
>> THANK YOU.

361
00:15:44,178 --> 00:15:46,314
LINDSEY NEBEKER.

362
00:15:46,314 --> 00:15:46,914
>> GOOD MORNING.

363
00:15:46,914 --> 00:15:47,181
I'M HERE.

364
00:15:47,181 --> 00:15:49,917
>> THANK YOU.

365
00:15:49,917 --> 00:15:54,922
>> JEPPY MAI PHAN.

366
00:15:54,922 --> 00:15:55,456
>> GOOD MORNING I'M HERE.

367
00:15:55,456 --> 00:15:57,792
>> DO YOU WANT TO SAY
WHERE 

368
00:15:57,792 --> 00:15:58,960
YOU'RE FROM?

369
00:15:58,960 --> 00:16:06,167
>> HI, SELF-ADVOCATE AND
MOTHER 

370
00:16:06,167 --> 00:16:10,538
OF FOUR AND RESEARCHER AT 

371
00:16:10,538 --> 00:16:11,639
NATIONAL CHILDREN'S HOSPITAL.

372
00:16:11,639 --> 00:16:15,443
>> JALYNN PRINCE.

373
00:16:15,443 --> 00:16:20,515
>> A PARENT AND WORK WITH
THE 

374
00:16:20,515 --> 00:16:21,816
MADISON HOUSE FOUNDATION TO LOOK

375
00:16:21,816 --> 00:16:24,085
AT THE ISSUES COLLECTIVELY AND 

376
00:16:24,085 --> 00:16:24,685
TRYING TO COORDINATE MANY OF 

377
00:16:24,685 --> 00:16:28,756
THOSE THINGS.

378
00:16:28,756 --> 00:16:38,733
>> CAMILLE PROCTOR.

379
00:16:38,733 --> 00:16:41,302
SUSAN RIVERA.

380
00:16:41,302 --> 00:16:41,669
>> GOOD MORNING.

381
00:16:41,669 --> 00:16:44,505
PRESENT AND I'M FROM THE 

382
00:16:44,505 --> 00:16:47,442
UNIVERSITY OF MARYLAND.

383
00:16:47,442 --> 00:16:48,609
>> THANK YOU.

384
00:16:48,609 --> 00:16:50,011
MATTHEW SIEGEL.

385
00:16:50,011 --> 00:16:52,280
>> GOOD MORNING.

386
00:16:52,280 --> 00:16:56,484
TUFT'S UNIVERSITY AND MAINE 

387
00:16:56,484 --> 00:16:57,452
MEDICAL CENTER.

388
00:16:57,452 --> 00:16:59,420
>> IVANOVA SMITH.

389
00:16:59,420 --> 00:17:03,024
>> I LIVE IN WASHINGTON
STATE 

390
00:17:03,024 --> 00:17:04,492
AND I'M A SELF-ADVOCATE PUBLIC 

391
00:17:04,492 --> 00:17:08,095
MEMBER.

392
00:17:08,095 --> 00:17:09,130
>> THANK YOU.

393
00:17:09,130 --> 00:17:13,034
HARI SRINIVASAN.

394
00:17:13,034 --> 00:17:14,769
>> HE'S HAVING POWER
ISSUES AT 

395
00:17:14,769 --> 00:17:18,639
HIS HOUSE AND WILL HOPEFULLY BE 

396
00:17:18,639 --> 00:17:22,009
ON IN ABOUT HALF AN HOUR AFTER 

397
00:17:22,009 --> 00:17:24,245
HE XHUTS TO COLLEGE  -- COMMUTES

398
00:17:24,245 --> 00:17:26,647
TO COLLEGE.

399
00:17:26,647 --> 00:17:28,783
>> GOOD MORNING.

400
00:17:28,783 --> 00:17:35,089
HEL EN TAGER-FLUSBERG.

401
00:17:35,089 --> 00:17:37,792
>> AND JULIE TAYLOR IS NOT
HERE 

402
00:17:37,792 --> 00:17:39,460
BECAUSE I BELIEVE SHE HAS A 

403
00:17:39,460 --> 00:17:40,661
MEETING THIS MORNING BUT SHE'LL 

404
00:17:40,661 --> 00:17:50,805
BE CATCHING UP WITH US LATER.

405
00:17:50,805 --> 00:17:52,607
>> PAUL WANG FROM THE
SIMONS 

406
00:17:52,607 --> 00:17:55,309
FOUNDATION.

407
00:17:55,309 --> 00:17:57,845
PUBLIC MEMBER.

408
00:17:57,845 --> 00:17:59,747
>> MORENIKE IS ONLINE.

409
00:17:59,747 --> 00:18:09,123
>> WOULD YOU LIKE TO SAY
HELLO?

410
00:18:09,123 --> 00:18:11,325
>> THANKS FOR ATTENDING.

411
00:18:11,325 --> 00:18:14,095
I KNOW YOU LIKE TO COMMUNICATE 

412
00:18:14,095 --> 00:18:15,730
VIA CHAT AND WE LOOK FORWARD TO 

413
00:18:15,730 --> 00:18:16,163
YOUR COMMUNICATION.

414
00:18:16,163 --> 00:18:20,201
>> WE WELCOME YOU ALL AND
THAT 

415
00:18:20,201 --> 00:18:21,435
COMPLETES ROLL CALL.

416
00:18:21,435 --> 00:18:23,070
IF YOU'RE TOWARD THE END OF THE 

417
00:18:23,070 --> 00:18:26,107
TABLE AND SEE OPEN SEATS ARE 

418
00:18:26,107 --> 00:18:27,475
EMPTY I'M NOT SURE IF THOSE 

419
00:18:27,475 --> 00:18:29,277
FOLKS ARE COMING FEEL FREE TO 

420
00:18:29,277 --> 00:18:32,480
SWAP IN CLOSER IF YOU WISH OR 

421
00:18:32,480 --> 00:18:38,719
STAY WHERE YOU ARE.

422
00:18:38,719 --> 00:18:40,187
THAT CONCLUDES OUR ROLL CALL AND

423
00:18:40,187 --> 00:18:41,889
I'LL TURN OUR ATTENTION TO THE 

424
00:18:41,889 --> 00:18:44,292
LAST MEETING FROM APRIL 2023.

425
00:18:44,292 --> 00:18:45,993
YOU ALL RECEIVED A COPY OF THE 

426
00:18:45,993 --> 00:18:47,628
DRAFT MINUTES AND WE POSTED THEM

427
00:18:47,628 --> 00:18:48,663
ONLINE IN THE MEETING MATERIALS.

428
00:18:48,663 --> 00:18:51,732
AND I WANTED TO SEE AT THIS 

429
00:18:51,732 --> 00:18:52,433
MOMENT DOES ANYONE HAVE ANY 

430
00:18:52,433 --> 00:18:53,968
CONCERNS ABOUT THE MINUTES OR 

431
00:18:53,968 --> 00:18:55,036
ANYTHING THAT YOU THOUGHT NEEDED

432
00:18:55,036 --> 00:19:05,313
TO BE CORRECTED IN THE MINUTES?

433
00:19:05,313 --> 00:19:06,781
NOT SEEING ANY CAN I GET A 

434
00:19:06,781 --> 00:19:07,882
MOTION ON THE FLOOR TO ACCEPT 

435
00:19:07,882 --> 00:19:08,182
THE MINUTES?

436
00:19:08,182 --> 00:19:10,151
>> I'LL PUT A MOTION ON
THE 

437
00:19:10,151 --> 00:19:10,518
FLOOR.

438
00:19:10,518 --> 00:19:11,586
>> A SECOND?

439
00:19:11,586 --> 00:19:14,455
ALL IN FAVOR OF ACCEPTING THE 

440
00:19:14,455 --> 00:19:14,689
MINUTES?

441
00:19:14,689 --> 00:19:16,290
YOU CAN PHYSICALLY RAISE YOUR 

442
00:19:16,290 --> 00:19:17,024
HAND IF YOU'D LIKE AND RAISE 

443
00:19:17,024 --> 00:19:27,335
YOUR HAND ON ZOOM.

444
00:19:28,736 --> 00:19:31,005
ANYONE OPPOSED OR ABSTAINING.

445
00:19:31,005 --> 00:19:35,443
WE'LL GET THOSE POSTED AFTER THE

446
00:19:35,443 --> 00:19:37,511
MEETING AND SINCE THERE'S NO 

447
00:19:37,511 --> 00:19:38,613
CHANGES IT'S EXACTLY THE SAME AS

448
00:19:38,613 --> 00:19:40,081
THE WEBSITE.

449
00:19:40,081 --> 00:19:42,717
I'D LIKE TO REMIND EVERYONE THAT

450
00:19:42,717 --> 00:19:44,218
IS JOINING US ONLINE OR EVEN 

451
00:19:44,218 --> 00:19:45,720
HERE IN THE AUDIENCE OR AT THE 

452
00:19:45,720 --> 00:19:48,489
TABLE ALL THE MATERIALS FOR THE 

453
00:19:48,489 --> 00:19:51,425
MEETING ARE ONLINE ON THE IACC 

454
00:19:51,425 --> 00:19:52,293
WEBSITE.

455
00:19:52,293 --> 00:19:53,894
NAVIGATE TO THE MEETINGS TAB AND

456
00:19:53,894 --> 00:19:56,430
GO TO THE MEETING HAPPENING THIS

457
00:19:56,430 --> 00:19:59,533
DATE AND THERE'S A WHOLE LONG 

458
00:19:59,533 --> 00:20:00,401
PAGE WITH EVERYTHING YOU NEED 

459
00:20:00,401 --> 00:20:02,036
FOR THE MEETING AND ACCESS TO 

460
00:20:02,036 --> 00:20:04,505
ALL THE PDFs AND INFORMATION 

461
00:20:04,505 --> 00:20:06,140
ABOUT OUR SPEAKERS, OUR BIOS AND

462
00:20:06,140 --> 00:20:06,974
ALL THAT.

463
00:20:06,974 --> 00:20:10,678
YOU CAN ACCESS THAT ALL ONLINE 

464
00:20:10,678 --> 00:20:14,782
AND FEEL FREE TO FIND THAT.

465
00:20:14,782 --> 00:20:17,151
SO WITH THAT, I'M GOING TO TURN 

466
00:20:17,151 --> 00:20:23,858
IT BACK OVER TO DR. GORDON.

467
00:20:23,858 --> 00:20:27,728
>> THANK YOU.

468
00:20:27,728 --> 00:20:34,702
IT'S MY PLEASURE TO INTRODUCE 

469
00:20:34,702 --> 00:20:39,273
MS. ANUPA GEEVARGHESE AT THE 

470
00:20:39,273 --> 00:20:45,613
U.S. DEPARTMENT OF LABOR.

471
00:20:45,613 --> 00:20:47,648
SHE'LL SHARE SOME WORDS WITH US 

472
00:20:47,648 --> 00:20:49,750
AND SORRY IF I MISPRONOUNCED 

473
00:20:49,750 --> 00:20:50,484
THAT.

474
00:20:50,484 --> 00:20:50,785
GEEVARGHESE.

475
00:20:50,785 --> 00:20:54,288
THANK YOU FOR COMING TO US TODAY

476
00:20:54,288 --> 00:21:02,663
AND FOR GIVING US AN UPDATE ON 

477
00:21:02,663 --> 00:21:04,165
EMPLOYMENT AWARENESS  FOR 

478
00:21:04,165 --> 00:21:04,465
DISABILITY.

479
00:21:04,465 --> 00:21:05,266
>> THANK YOU.

480
00:21:05,266 --> 00:21:08,736
MY NAME IS ANUPA GEEVARGHESE.

481
00:21:08,736 --> 00:21:12,273
I'M A BROWN WOMAN WITH BLACK 

482
00:21:12,273 --> 00:21:14,608
BANGS WEARING A SILVER NECKLACE 

483
00:21:14,608 --> 00:21:16,477
AND BLUE ADDRESS AND BEHIND ME 

484
00:21:16,477 --> 00:21:21,849
IS THE BACKGROUND FOR THIS 

485
00:21:21,849 --> 00:21:26,654
YEAR'S SERIES OF MULTI-COLORED 

486
00:21:26,654 --> 00:21:28,489
ARROWS AND PEOPLE WITH VARIOUS 

487
00:21:28,489 --> 00:21:30,658
DISABILITIES SMILING IN BOX AND 

488
00:21:30,658 --> 00:21:32,493
THE WORDS ADVANCING ACCESS AND 

489
00:21:32,493 --> 00:21:34,829
EQUITY.

490
00:21:34,829 --> 00:21:37,798
I AM THE CHIEF OF STAFF FOR THE 

491
00:21:37,798 --> 00:21:38,666
OFFICE OF DISABILITY EMPLOYMENT 

492
00:21:38,666 --> 00:21:39,233
POLICY AT THE DEPARTMENT OF 

493
00:21:39,233 --> 00:21:40,701
LABOR.

494
00:21:40,701 --> 00:21:44,472
AND I WANT TO START MY REMARKS 

495
00:21:44,472 --> 00:21:47,341
BY THANKING DR. GORDON AND 

496
00:21:47,341 --> 00:21:49,643
DR. DANIELS AND MEMBERS OF THE 

497
00:21:49,643 --> 00:21:51,011
INTERAGENCY AUTISM COORDINATING 

498
00:21:51,011 --> 00:21:52,246
COMMITTEE FOR INVITING ME TO 

499
00:21:52,246 --> 00:21:56,050
SPEAK TODAY ON BEHALF OF 

500
00:21:56,050 --> 00:21:56,684
ASSISTANT SECRETARY WILLIAMS.

501
00:21:56,684 --> 00:22:02,356
FOR THOSE NOT FAMILIAR, ODAP IS 

502
00:22:02,356 --> 00:22:03,724
THE ONLY NON-REGULATORY FEDERAL 

503
00:22:03,724 --> 00:22:05,392
AGENCY THAT PROMOTES POLICIES 

504
00:22:05,392 --> 00:22:07,661
AND COORDINATES WITH EMPLOYERS 

505
00:22:07,661 --> 00:22:11,132
AT ALL LEVELS OF GOVERNMENT TO 

506
00:22:11,132 --> 00:22:11,766
INCREASE WORKPLACE SUCCESS FOR 

507
00:22:11,766 --> 00:22:16,504
PEOPLE WITH DISABILITIES.

508
00:22:16,504 --> 00:22:18,906
OUR MISSION IS TO DEVELOP AND 

509
00:22:18,906 --> 00:22:20,708
INFLUENCE POLICIES AND PRACTICES

510
00:22:20,708 --> 00:22:24,478
THAT INCREASE THE NUMBER AND I 

511
00:22:24,478 --> 00:22:26,680
MUST STRESS THE QUALITY OF 

512
00:22:26,680 --> 00:22:27,815
EMPLOYMENT OPPORTUNITIES FOR 

513
00:22:27,815 --> 00:22:31,085
PEOPLE WITH DISABILITIES.

514
00:22:31,085 --> 00:22:34,755
ODAP IS WORKING EVERY DAY TO 

515
00:22:34,755 --> 00:22:36,757
IMPROVE ACCESS AND OPPORTUNITIES

516
00:22:36,757 --> 00:22:39,360
AND WORKFORCE INCLUSION WITH 

517
00:22:39,360 --> 00:22:41,061
POLICY CHANGE, RESEARCH OUTREACH

518
00:22:41,061 --> 00:22:43,130
AND TECHNICAL ASSISTANCE.

519
00:22:43,130 --> 00:22:50,337
PART OF OUR WORK IS TO PROMO PR 

520
00:22:50,337 --> 00:22:51,872
AWARENESS OF INCLUSIVE 

521
00:22:51,872 --> 00:22:53,174
WORKPLACES.

522
00:22:53,174 --> 00:22:55,376
I'M EXCITED TO PROMOTE NATIONAL 

523
00:22:55,376 --> 00:22:59,280
DISABILITY EMPLOYMENT AWARENESS 

524
00:22:59,280 --> 00:23:02,149
MONTH OR NDE.

525
00:23:02,149 --> 00:23:04,418
WE INCLUDED WORKERS WITH 

526
00:23:04,418 --> 00:23:07,721
DISABILITIES IN OCTOBER SINCE 

527
00:23:07,721 --> 00:23:10,191
1945 WHEN CONGRESS ESTABLISHED A

528
00:23:10,191 --> 00:23:16,063
WEEK LONG CELEBRATION THAT YEAR 

529
00:23:16,063 --> 00:23:17,698
AND GAVE RISE TO OUR EMPLOYMENT 

530
00:23:17,698 --> 00:23:22,403
AWARENESS MONTH IN 1988.

531
00:23:22,403 --> 00:23:25,306
THIS YEAR'S THEME OF ADVANCING 

532
00:23:25,306 --> 00:23:28,309
ACCESS AND EQUITY BUILDS ON OUR 

533
00:23:28,309 --> 00:23:34,048
THEME COMMEMORATING THE 50th 

534
00:23:34,048 --> 00:23:36,483
ANNIVERSARY OF THE 

535
00:23:36,483 --> 00:23:37,284
REHABILITATION ACT OF 1973 

536
00:23:37,284 --> 00:23:38,686
ADVANCING ACCESS AND EQUITY, 

537
00:23:38,686 --> 00:23:42,656
THEN, NOW AND NEXT.

538
00:23:42,656 --> 00:23:44,491
SO, IT WAS THE FIRST PIECE OF 

539
00:23:44,491 --> 00:23:45,759
LEGISLATION THAT GUARANTEED 

540
00:23:45,759 --> 00:23:48,495
ACCESS AND EQUITY FOR PEOPLE 

541
00:23:48,495 --> 00:23:50,164
WITH DISABILITIES.

542
00:23:50,164 --> 00:23:54,435
THIS YEAR'S THEME ALSO MATCHING 

543
00:23:54,435 --> 00:23:56,470
THE IACC'S EMPHASIS ON SUPPORT 

544
00:23:56,470 --> 00:24:00,474
FOR EQUITY, INCLUSION AND 

545
00:24:00,474 --> 00:24:01,075
ACCESSIBILITY IN THE RECENTLY 

546
00:24:01,075 --> 00:24:03,577
RELEASED STRATEGIC PLAN.

547
00:24:03,577 --> 00:24:05,212
I'M PROUD OF THE HISTORIC 

548
00:24:05,212 --> 00:24:06,914
COMMITMENT THE BIDEN HARRIS 

549
00:24:06,914 --> 00:24:08,482
ADMINISTRATION HAS TOWARDS I AM 

550
00:24:08,482 --> 00:24:10,517
PROVING ACCESSIBILITY FOR JOB 

551
00:24:10,517 --> 00:24:12,019
SEEKERS AND WORKERS INCLUDING 

552
00:24:12,019 --> 00:24:13,487
PEOPLE WITH DISABILITIES.

553
00:24:13,487 --> 00:24:16,457
WHEN PRESIDENT BIDEN ISSUED 

554
00:24:16,457 --> 00:24:18,959
EXECUTIVE ORDER 14035 ON 

555
00:24:18,959 --> 00:24:22,529
DIVERSITY, EQUITY, INCLUSION 

556
00:24:22,529 --> 00:24:23,664
ACCESSIBILITY IN THE FEDERAL 

557
00:24:23,664 --> 00:24:27,167
WORKPLACE IT WAS THE FIRST TIME 

558
00:24:27,167 --> 00:24:28,502
THE BROADER DEI EFFORTS 

559
00:24:28,502 --> 00:24:30,271
EMPHASIZED DISABILITIES BY 

560
00:24:30,271 --> 00:24:33,641
ADDING THE A FOR ACCESSIBLE.

561
00:24:33,641 --> 00:24:38,078
WE HAVE PRIORITIZED OUR 

562
00:24:38,078 --> 00:24:44,485
COMMITMENT TO DEIA TO ENSURE THE

563
00:24:44,485 --> 00:24:44,985
HIST

564
00:24:44,985 --> 00:24:47,488
HISTORIC INVESTING OF AMERICA 

565
00:24:47,488 --> 00:24:49,924
CREATES GOOD JOBS FOR WORKERS 

566
00:24:49,924 --> 00:24:52,860
WITH DISABILITIES INCLUDING 

567
00:24:52,860 --> 00:24:53,294
NEURODIVERSE.

568
00:24:53,294 --> 00:24:55,429
WE RECOGNIZE PEOPLE 

569
00:24:55,429 --> 00:24:57,264
NEURODIVERGENT AND ON THE AUTISM

570
00:24:57,264 --> 00:24:59,266
SPECTRUM FACE MAJOR WORK 

571
00:24:59,266 --> 00:25:00,935
BARRIERS AND FIND IT CHALLENGING

572
00:25:00,935 --> 00:25:04,405
TO MAH GAIN AND MAINTAIN JOBS TO

573
00:25:04,405 --> 00:25:06,206
FIT THEIR STRENGTH, TALENT, 

574
00:25:06,206 --> 00:25:09,009
SKILLS AND INTERESTS.

575
00:25:09,009 --> 00:25:12,513
MANY AUTISTIC PEOPLE REMAIN 

576
00:25:12,513 --> 00:25:14,615
UNDER EMPLOYED AND CANNOT ACCESS

577
00:25:14,615 --> 00:25:17,418
NODED WORK ACCOMMODATIONS AND --

578
00:25:17,418 --> 00:25:19,653
NEEDED ACCOMMODATIONS FOR JOB 

579
00:25:19,653 --> 00:25:24,858
AND CAREER SUCCESS.

580
00:25:24,858 --> 00:25:27,494
ODEF EMPLOYER ASSISTANCE WORKS 

581
00:25:27,494 --> 00:25:29,530
TO ADDRESS THE ISSUES IN ITS 

582
00:25:29,530 --> 00:25:32,299
WORK AS OUR POLICY DEVELOPMENT 

583
00:25:32,299 --> 00:25:34,501
AND TECHNICAL ASSISTANCE CENTER 

584
00:25:34,501 --> 00:25:34,902
FOR EMPLOYERS.

585
00:25:34,902 --> 00:25:37,271
FOR INSTANCE, THE WEBSITE OFFERS

586
00:25:37,271 --> 00:25:39,173
A GUIDE TO NEURODIVERSITY IN THE

587
00:25:39,173 --> 00:25:41,408
WORK PLIS FOR EMPLOYERS.

588
00:25:41,408 --> 00:25:45,412
THIS GUIDE HIGHLIGHTS OUR 

589
00:25:45,412 --> 00:25:46,814
ORGANIZATIONAL EMPLOYEE BENEFITS

590
00:25:46,814 --> 00:25:48,115
FOR NOOURS DIVERSITY AT WORK AND

591
00:25:48,115 --> 00:25:49,483
PRACTICES FOR MANAGEMENT, 

592
00:25:49,483 --> 00:25:51,518
MENTORING AND PEER TRAINING.

593
00:25:51,518 --> 00:25:54,888
IT ALSO DESCRIBES HIRING AND 

594
00:25:54,888 --> 00:25:56,490
RECRUITMENT PROGRAMS FOR 

595
00:25:56,490 --> 00:25:57,491
NEURODIVERSITY AT WORK IN THE 

596
00:25:57,491 --> 00:26:00,494
FEDERAL GOVERNMENT AND PRIVATE 

597
00:26:00,494 --> 00:26:01,795
SECTOR.

598
00:26:01,795 --> 00:26:08,502
ANOTHER SECTOR THE JOB 

599
00:26:08,502 --> 00:26:10,938
ACCOMMODATION NETWORK WORKS WITH

600
00:26:10,938 --> 00:26:13,240
SERVICE PROVIDERS AND FREE 

601
00:26:13,240 --> 00:26:14,174
CONFIDENTIAL AND EXPERT GUIDANCE

602
00:26:14,174 --> 00:26:17,878
ON WORK ACCOMMODATIONS.

603
00:26:17,878 --> 00:26:21,548
THE WEBSITE FEATURES AN OF TO C 

604
00:26:21,548 --> 00:26:22,950
GUIDE ON WORK ACCOMMODATIONS AND

605
00:26:22,950 --> 00:26:28,022
THIS INCLUDES A DEDICATED PAGE 

606
00:26:28,022 --> 00:26:28,922
ON NEURODIVERSITY AS WELL AS 

607
00:26:28,922 --> 00:26:30,624
SPECIAL SPECIFIC DISABILITIES 

608
00:26:30,624 --> 00:26:32,493
SUCH AS AUTISM, INTELLECTUAL AND

609
00:26:32,493 --> 00:26:34,128
MENTAL HEALTH MEASURES.

610
00:26:34,128 --> 00:26:38,365
IN APRIL, THERE WAS A WEBINAR ON

611
00:26:38,365 --> 00:26:41,602
ACCOMMODATION SOLUTIONS FOR 

612
00:26:41,602 --> 00:26:47,541
NEURODIVERGENT WORKERS AND IT'S 

613
00:26:47,541 --> 00:26:48,876
ARCHIVED ONLINE.

614
00:26:48,876 --> 00:26:51,445
AND YOUNG ADULTS ON THE AUTISM 

615
00:26:51,445 --> 00:26:53,147
SPECTRUM ALSO CONTINUES TO 

616
00:26:53,147 --> 00:26:54,715
INVESTIGATE KEY ISSUES TO 

617
00:26:54,715 --> 00:26:56,483
IMPROVE ACCESS TO JOBS AND 

618
00:26:56,483 --> 00:26:58,419
CAREERS AND ADDRESS BARRIERS 

619
00:26:58,419 --> 00:27:01,255
IMPACTING YOUNG ADULTS ON THE 

620
00:27:01,255 --> 00:27:02,656
AUTISM SPECTRUM.

621
00:27:02,656 --> 00:27:05,059
IN APRIL THE REPORT ON THE USE 

622
00:27:05,059 --> 00:27:10,497
OF FEDERALLY AND STATE FUNDED 

623
00:27:10,497 --> 00:27:11,432
VOCATIONAL REHABILITATION 

624
00:27:11,432 --> 00:27:13,200
SERVICES BY YOUNG ADULTS.

625
00:27:13,200 --> 00:27:15,002
THE WEBSITE CONTAINS A REPORT 

626
00:27:15,002 --> 00:27:16,336
FROM PRIOR LISTENING SECTIONS 

627
00:27:16,336 --> 00:27:17,538
AND LITERATURE REVIEWS ON 

628
00:27:17,538 --> 00:27:19,506
PROGRAMS, MODELS AND STRATEGIES 

629
00:27:19,506 --> 00:27:20,574
AND EVIDENCE BASED AND 

630
00:27:20,574 --> 00:27:23,277
EFFECTIVENESS.

631
00:27:23,277 --> 00:27:26,647
THE ACTIVITIES TO HELP SUPPORT 

632
00:27:26,647 --> 00:27:28,082
PEOPLE WITH MENTAL HEALTH 

633
00:27:28,082 --> 00:27:29,216
CONDITIONS ALSO PLAY A CRUCIAL 

634
00:27:29,216 --> 00:27:34,321
ROLE IN OUR OVER ALL ENGAGEMENT 

635
00:27:34,321 --> 00:27:37,057
TO FOSTER NEURODIVERSITY AT WORK

636
00:27:37,057 --> 00:27:38,692
AND WE'RE DELIGHTED IACC IS 

637
00:27:38,692 --> 00:27:41,328
HOSTING SESSIONS ON MENTAL 

638
00:27:41,328 --> 00:27:42,629
HEALTH NEEDS OF AUTISTIC PEOPLE 

639
00:27:42,629 --> 00:27:42,996
THIS AFTERNOON.

640
00:27:42,996 --> 00:27:46,266
IN MAY, THE DEPARTMENT OF LABOR 

641
00:27:46,266 --> 00:27:49,903
LAUNCHED A WEB PAGE WITH 

642
00:27:49,903 --> 00:27:56,410
RESOURCES TO HELP CULTIVATE 

643
00:27:56,410 --> 00:27:57,678
MENTAL HEALTH WORKPLACES AND 

644
00:27:57,678 --> 00:27:59,513
THERE'S A WORKPLACE MENTAL 

645
00:27:59,513 --> 00:28:01,482
HEALTH TOOL KIT FOR EMPLOYERS 

646
00:28:01,482 --> 00:28:04,918
YOU CAN FIND ALSO AT THE WEBSITE

647
00:28:04,918 --> 00:28:06,854
ASK EARN.org.

648
00:28:06,854 --> 00:28:08,188
THE TOOL KIT SHARES RESOURCES 

649
00:28:08,188 --> 00:28:10,224
AND INFORMATION TO SUPPORT THE 

650
00:28:10,224 --> 00:28:13,927
MENTAL HEALTH AND WELL-BEING OF 

651
00:28:13,927 --> 00:28:15,462
ALL WORKERS AND DESCRIBES 

652
00:28:15,462 --> 00:28:19,199
STRATEGIES FOR CREATING A MENTAL

653
00:28:19,199 --> 00:28:20,701
HEALTH FRIENDLY WORKPLACE AND 

654
00:28:20,701 --> 00:28:22,136
CULTURE SUCH ADDS PROVIDING 

655
00:28:22,136 --> 00:28:24,138
ASSISTANCE TO EMPLOYEES AND 

656
00:28:24,138 --> 00:28:25,739
ENSURING ACCESS TO NEEDED WORK 

657
00:28:25,739 --> 00:28:27,808
ACCOMMODATIONS AND SUPPORTS.

658
00:28:27,808 --> 00:28:30,444
THE PROJECT ON ADVANCING STATE 

659
00:28:30,444 --> 00:28:32,479
POLICY INTEGRATION FOR RECOVERY 

660
00:28:32,479 --> 00:28:34,515
AND EMPLOYMENT OR ASPIRE ALSO 

661
00:28:34,515 --> 00:28:36,483
ADVANCES EMPLOYMENT ACCESS FOR 

662
00:28:36,483 --> 00:28:38,118
PEOPLE WITH MENTAL HEALTH 

663
00:28:38,118 --> 00:28:38,519
CONDITIONS.

664
00:28:38,519 --> 00:28:40,988
THIS OCTOBER I ENCOURAGE YOU TO 

665
00:28:40,988 --> 00:28:42,956
HELP PROMOTE INCLUSIVE ACCESS TO

666
00:28:42,956 --> 00:28:45,292
EMPLOYMENT AND CAREER PATHWAYS 

667
00:28:45,292 --> 00:28:48,495
FOR PEOPLE WITH DISABILITIES BY 

668
00:28:48,495 --> 00:28:50,030
HOSTING EVENTS AND REMEMBER IT'S

669
00:28:50,030 --> 00:28:53,300
NOT JUST OCTOBER IT CAN BE EVERY

670
00:28:53,300 --> 00:28:56,303
SINGLE DAY SO PLEASE VISIT THE 

671
00:28:56,303 --> 00:29:06,780
WEB PAGE FOR INFORMATION AT 

672
00:29:07,114 --> 00:29:07,915
DOL.GOV/AGENCY/INITIATIVES/ND.

673
00:29:07,915 --> 00:29:09,149
TO DOWNLOAD THE POSTER IN 

674
00:29:09,149 --> 00:29:11,018
ENGLISH AND SPANISH YOU CAN ALSO

675
00:29:11,018 --> 00:29:14,555
WATCH A GREAT VIDEO 

676
00:29:14,555 --> 00:29:15,856
COMMEMORATING AND FIND 

677
00:29:15,856 --> 00:29:16,890
RESOURCES.

678
00:29:16,890 --> 00:29:18,859
THANK YOU ALL FOR SUPPORTING 

679
00:29:18,859 --> 00:29:19,960
INCLUSIVE EMPLOYMENT AND CAREERS

680
00:29:19,960 --> 00:29:21,762
FOR PEOPLE WITH DISABILITIES 

681
00:29:21,762 --> 00:29:24,498
INCLUDING AUTISTIC PEOPLE TO 

682
00:29:24,498 --> 00:29:28,235
HELP IMPROVE ECONOMIC WELL-BEING

683
00:29:28,235 --> 00:29:28,702
AND QUALITY OF LIFE.

684
00:29:28,702 --> 00:29:39,012
THANK YOU SO MUCH.

685
00:29:46,186 --> 00:29:48,088
>> WE HAVE A WEB PAGE
DEVOTED TO

686
00:29:48,088 --> 00:29:50,757
ENDING RESOURCES YOU CAN FIND ON

687
00:29:50,757 --> 00:30:00,968
THE IACC WEBSITE.

688
00:30:00,968 --> 00:30:04,471
I KNOW ON OUR WEBSITE TODAY WE 

689
00:30:04,471 --> 00:30:06,139
HAVE SOME RESOURCES LISTED AND 

690
00:30:06,139 --> 00:30:07,140
IF THERE'S ADDITIONAL ONES WE 

691
00:30:07,140 --> 00:30:12,012
CAN ADD THAT ON.

692
00:30:12,012 --> 00:30:14,681
THANK YOU SO MUCH FOR BEING WITH

693
00:30:14,681 --> 00:30:23,423
US TODAY.

694
00:30:23,423 --> 00:30:28,128
I HEARD MATTHEW MILLER IS ON FOR

695
00:30:28,128 --> 00:30:29,129
THE VETERAN'S ADMINISTRATION.

696
00:30:29,129 --> 00:30:30,931
>> THIS IS SAM CRANE AS A
PUBLIC

697
00:30:30,931 --> 00:30:32,499
MEMBER NOW ON.

698
00:30:32,499 --> 00:30:34,234
>> THANK YOU.

699
00:30:34,234 --> 00:30:36,270
ANYBODY ELSE WHO JOINED LATE AND

700
00:30:36,270 --> 00:30:39,306
MISSED THE ROLL CALL THAT WANTS 

701
00:30:39,306 --> 00:30:39,940
TO SAY HELLO?

702
00:30:39,940 --> 00:30:40,907
ALL RIGHT, THEN.

703
00:30:40,907 --> 00:30:42,209
THANK YOU SO MUCH.

704
00:30:42,209 --> 00:30:44,044
WE'LL MOVE ON NOW TO THE 

705
00:30:44,044 --> 00:30:44,678
NATIONAL AUTISM COORDINATOR 

706
00:30:44,678 --> 00:30:47,381
UPDATE AND I HAVE A FEW UPDATES 

707
00:30:47,381 --> 00:30:52,286
TO SHARE WITH YOU.

708
00:30:52,286 --> 00:30:55,922
THIS IS JUST REPEATING THE 

709
00:30:55,922 --> 00:30:56,690
NATIONAL AUTISM COORDINATOR HAS 

710
00:30:56,690 --> 00:30:58,125
BEEN APPOINTED AND THERE'S 

711
00:30:58,125 --> 00:30:59,159
INFORMATION ON THE SLIDE FOR 

712
00:30:59,159 --> 00:30:59,993
PEOPLE WHO MAY NOT BE ABLE TO 

713
00:30:59,993 --> 00:31:03,463
JOIN THE MEETING.

714
00:31:03,463 --> 00:31:06,133
SO I'M GOING TO GIVE YOU AN 

715
00:31:06,133 --> 00:31:07,934
OVERVIEW OF SOME DIFFERENT 

716
00:31:07,934 --> 00:31:10,871
UPDATES INCLUDING UPDATES FROM 

717
00:31:10,871 --> 00:31:12,172
THE WHITE HOUSE, FEDERAL 

718
00:31:12,172 --> 00:31:13,140
COMMITTEES, FEDERAL DEPARTMENTS 

719
00:31:13,140 --> 00:31:15,876
AND AGENCIES AND 

720
00:31:15,876 --> 00:31:16,476
NON-GOVERNMENTAL AGENCIES AND 

721
00:31:16,476 --> 00:31:22,849
ORGANIZATIONS.

722
00:31:22,849 --> 00:31:24,484
SO FOR THE WHITE HOUSE, 

723
00:31:24,484 --> 00:31:25,952
PRESIDENT BIDEN ISSUED SEVERAL 

724
00:31:25,952 --> 00:31:26,687
PROCLAMATIONS SINCE THE LAST 

725
00:31:26,687 --> 00:31:27,721
MEETING AND STATEMENTS AND A 

726
00:31:27,721 --> 00:31:30,257
WANTED TO POINT YOU TO THOSE AND

727
00:31:30,257 --> 00:31:31,992
WE HAVE LINKS IN THE SLIDE SET 

728
00:31:31,992 --> 00:31:33,694
FOR THOSE WHO WANT TO ACCESS 

729
00:31:33,694 --> 00:31:34,127
THEM.

730
00:31:34,127 --> 00:31:37,197
FIRST WAS THE PROCLAMATION FOR 

731
00:31:37,197 --> 00:31:37,831
NATIONAL DISABILITY EMPLOYMENT 

732
00:31:37,831 --> 00:31:38,732
AWARENESS MONTH THAT JUST CAME 

733
00:31:38,732 --> 00:31:38,965
OUT.

734
00:31:38,965 --> 00:31:40,400
THERE WAS ALSO A STATEMENT FROM 

735
00:31:40,400 --> 00:31:43,737
THE PRESIDENT ABOUT THE 50th 

736
00:31:43,737 --> 00:31:44,504
ANNIVERSARY OF THE 

737
00:31:44,504 --> 00:31:46,907
REHABILITATION ACT AND THEY HAD 

738
00:31:46,907 --> 00:31:48,508
A WONDERFUL EVENT UP AT THE 

739
00:31:48,508 --> 00:31:50,644
WHITE HOUSE AND PROCLAMATION ON 

740
00:31:50,644 --> 00:31:51,445
THE ANNIVERSARY ON THE AMERICANS

741
00:31:51,445 --> 00:31:52,612
WITH DISABILITIES AC THIS SUMMER

742
00:31:52,612 --> 00:31:54,514
IN JULY.

743
00:31:54,514 --> 00:32:00,987
-- ACT THIS SUMMER IN JULY.

744
00:32:00,987 --> 00:32:04,491
PRESIDENT BIDEN ALSO ANNOUNCED 

745
00:32:04,491 --> 00:32:14,568
HIS INTENT TO NOMINATE 

746
00:32:14,568 --> 00:32:18,472
DR. BERTAGNOLLI FROM THE 

747
00:32:18,472 --> 00:32:20,507
NATIONAL CANCER INSTITUTE AND 

748
00:32:20,507 --> 00:32:23,410
HELP SHE'LL BE ABLE TO JOIN THE 

749
00:32:23,410 --> 00:32:33,854
IACC AND SAY A FEW WORDS.

750
00:32:34,921 --> 00:32:35,756
I'LL GIVE A FEW FEDERAL 

751
00:32:35,756 --> 00:32:37,591
COMMITTEE UPDATES.

752
00:32:37,591 --> 00:32:39,359
FIRST, THE INTERAGENCY COMMITTEE

753
00:32:39,359 --> 00:32:40,994
ON DISABILITY RESEARCH WHICH IS 

754
00:32:40,994 --> 00:32:43,363
MANAGED BY THE ADMINISTRATION 

755
00:32:43,363 --> 00:32:44,331
FOR COMMUNITY LIVING HAD SEVERAL

756
00:32:44,331 --> 00:32:50,504
DIFFERENT RECENT ACTIVITIES 

757
00:32:50,504 --> 00:32:53,106
INCLUDING CULTURAL COMPETENCE IN

758
00:32:53,106 --> 00:32:53,573
HEALTH CARE.

759
00:32:53,573 --> 00:32:55,642
HOW DOES COVID-19 RECESSION 

760
00:32:55,642 --> 00:32:57,511
IMPACT PEOPLE WITH DISABILITIES 

761
00:32:57,511 --> 00:32:58,578
ACROSS AMERICA.

762
00:32:58,578 --> 00:33:00,013
EMERGENCY PREPAREDNESS AND THE 

763
00:33:00,013 --> 00:33:02,716
IMPACT OF CLIMATE CHANGE ON 

764
00:33:02,716 --> 00:33:09,289
PEOPLE WITH DISABILITIES.

765
00:33:09,289 --> 00:33:11,425
DISPARITIES IN HEALTH CARE WITH 

766
00:33:11,425 --> 00:33:12,626
DUAL ELIGIBILITY AND 

767
00:33:12,626 --> 00:33:13,326
PARTICIPATORY ACTION WITH PEOPLE

768
00:33:13,326 --> 00:33:16,930
WITH DISABILITIES AND THERE WAS 

769
00:33:16,930 --> 00:33:18,965
A STAKEHOLDER MEETING IN JUNE 

770
00:33:18,965 --> 00:33:20,233
AND THERE'S MORE INFORMATION ON 

771
00:33:20,233 --> 00:33:21,768
THE WEBSITE AND A SUMMARY 

772
00:33:21,768 --> 00:33:23,703
AVAILABLE FOR THE FEBRUARY 2023 

773
00:33:23,703 --> 00:33:25,038
STATE OF THE SCIENCE CONFERENCE 

774
00:33:25,038 --> 00:33:33,847
ON DISABILITY STATISTICS.

775
00:33:33,847 --> 00:33:36,483
AN UPDATE FROM THE RAISE FAMILY 

776
00:33:36,483 --> 00:33:38,685
CAREGIVING ADVISORY COUNCIL.

777
00:33:38,685 --> 00:33:40,454
THEY MET IN JULY 2023 AND HAD A 

778
00:33:40,454 --> 00:33:42,589
JOINT KICKOFF MEETING FOR THE 

779
00:33:42,589 --> 00:33:44,591
NEW COUNCIL THAT'S BEEN 

780
00:33:44,591 --> 00:33:47,761
APPOINTED AND MET JOINTLY WITH 

781
00:33:47,761 --> 00:33:50,497
THE ADVISORY COUNCIL TO SUPPORT 

782
00:33:50,497 --> 00:33:53,900
GRANDPARENTS RAISING GRAND 

783
00:33:53,900 --> 00:33:54,267
CHILDREN.

784
00:33:54,267 --> 00:33:56,736
THEY FOCUSSED ON COMMENTS AND 

785
00:33:56,736 --> 00:33:57,370
NATIONAL STRATEGIES TO SUPPORT 

786
00:33:57,370 --> 00:34:03,643
CAREGIVERS.

787
00:34:03,643 --> 00:34:05,679
THE NATIONAL COUNCIL ON 

788
00:34:05,679 --> 00:34:07,314
DISABILITY A FEDERAL AGENCY 

789
00:34:07,314 --> 00:34:08,949
DEVOTED TO DISABILITY ISSUES HAD

790
00:34:08,949 --> 00:34:16,490
A RECENT NCB COUNCIL MEETING IN 

791
00:34:16,490 --> 00:34:19,626
NOVEMBER THEY HAVE ONE THAT WILL

792
00:34:19,626 --> 00:34:21,528
BE FOCUSSED ON HOUSING AND 

793
00:34:21,528 --> 00:34:23,463
TRANSPORTATION AND HAVE A 

794
00:34:23,463 --> 00:34:26,733
QUARTERLY MEETING AND ADA EVENT 

795
00:34:26,733 --> 00:34:28,702
THAT'S RECORDED IF YOU WANT TO 

796
00:34:28,702 --> 00:34:31,671
WATCH AND A NEW REPORT ON THE 

797
00:34:31,671 --> 00:34:32,772
IMPACTS OF EXTREME WEATHER WITH 

798
00:34:32,772 --> 00:34:34,608
PEOPLE WITH DISABILITIES POSTED 

799
00:34:34,608 --> 00:34:36,977
ON THE IACC WEBSITE IN CASE 

800
00:34:36,977 --> 00:34:38,712
ANYONE WANTS TO ACCESS.

801
00:34:38,712 --> 00:34:42,249
WE HAVE A SECTION ON DISABILITY 

802
00:34:42,249 --> 00:34:43,750
REPORTS AS WELL AS A SECTION ON 

803
00:34:43,750 --> 00:34:44,484
SPECIFIC AUTISM REPORTS ON THE 

804
00:34:44,484 --> 00:34:48,522
WEBSITE.

805
00:34:48,522 --> 00:34:51,491
THE FEDERAL PARTNERS IN 

806
00:34:51,491 --> 00:34:52,492
TRANSITION A VOLUNTARY ALL 

807
00:34:52,492 --> 00:34:54,160
FEDERAL WORKING GROUP MANAGED BY

808
00:34:54,160 --> 00:34:58,899
THE U.S. DEPARTMENT OF LABOR 

809
00:34:58,899 --> 00:35:00,133
FOCUSES ON TRANSITION AGE YOUTH 

810
00:35:00,133 --> 00:35:01,201
PEOPLE WITH ISSUES OR 

811
00:35:01,201 --> 00:35:01,601
DISABILITIES.

812
00:35:01,601 --> 00:35:04,070
THEIR RECENT ACTIVITIES INCLUDE 

813
00:35:04,070 --> 00:35:05,405
A RECENT STEERING COMMITTEE AND 

814
00:35:05,405 --> 00:35:06,506
GENERAL MEETING AND CONTINUING 

815
00:35:06,506 --> 00:35:09,576
TO WORK ON A STRATEGIC PLAN TO 

816
00:35:09,576 --> 00:35:12,812
ADDRESS ISSUES WITH YOUTH WITH 

817
00:35:12,812 --> 00:35:17,884
DISABILITIES.

818
00:35:17,884 --> 00:35:18,919
THE INTERDEPARTMENTAL SERIOUS 

819
00:35:18,919 --> 00:35:23,590
ILLNESS COORDINATING COMMITTEE 

820
00:35:23,590 --> 00:35:24,858
MANAGED BY THE SERVICES 

821
00:35:24,858 --> 00:35:26,626
ADMINISTRATION HAVE A MEETING 

822
00:35:26,626 --> 00:35:29,162
UPCOMING OCTOBER 18 AND WE'VE 

823
00:35:29,162 --> 00:35:30,063
PROVIDED THE INFORMATION HERE IF

824
00:35:30,063 --> 00:35:32,499
ANYONE WANTS TO ACCESS THAT 

825
00:35:32,499 --> 00:35:38,338
MEETING.

826
00:35:38,338 --> 00:35:40,507
THE ADVISORY COMMITTEE OF THE 

827
00:35:40,507 --> 00:35:41,942
FEDERAL COMMUNICATIONS 

828
00:35:41,942 --> 00:35:43,543
COMMISSION HAD A SEPTEMBER 2023 

829
00:35:43,543 --> 00:35:44,744
COMMITTEE MEETING AND WE 

830
00:35:44,744 --> 00:35:45,845
PROVIDED A LINK TO THE VIDEO IN 

831
00:35:45,845 --> 00:35:52,085
THE AGENDA AND THE TOPICS THEY 

832
00:35:52,085 --> 00:35:52,953
COVERED AND A.I. RIGHTS AND 

833
00:35:52,953 --> 00:36:03,296
AUDIO DESCRIPTIONS.

834
00:36:04,264 --> 00:36:08,501
THE PEOPLE WITH DISABILITIES 

835
00:36:08,501 --> 00:36:11,171
MARCHED BY THE COMMITTEE FOR 

836
00:36:11,171 --> 00:36:12,539
COMMUNITY LIVING LOOKS AT HOME 

837
00:36:12,539 --> 00:36:14,708
AND COMMUNITY-BASED SERVICES 

838
00:36:14,708 --> 00:36:16,643
INCLUDING THE SHORTAGE IN 

839
00:36:16,643 --> 00:36:17,944
DIRECT-SUPPORT PROFESSIONALS AND

840
00:36:17,944 --> 00:36:19,379
THE NEEDS FOR EMPLOYMENT AND 

841
00:36:19,379 --> 00:36:20,280
COMMUNITY LIVING SERVICES AND 

842
00:36:20,280 --> 00:36:23,116
YOU CAN ACCESS THE RECORDING ON 

843
00:36:23,116 --> 00:36:25,185
THE LINK THAT'S ON THE SLIDE AND

844
00:36:25,185 --> 00:36:26,653
ALL THE SLIDES WILL BE POSTED 

845
00:36:26,653 --> 00:36:27,420
AFTER THE MEETING SO PEOPLE CAN 

846
00:36:27,420 --> 00:36:37,631
ACCESS THEM.

847
00:36:37,897 --> 00:36:38,732
THE NATIONAL ADVISORY COMMITTEE 

848
00:36:38,732 --> 00:36:40,500
AS MANAGED BY THE DEPARTMENT OF 

849
00:36:40,500 --> 00:36:42,669
HEALTH AND HUMAN SERVICES 

850
00:36:42,669 --> 00:36:44,504
ADMINISTRATION FOR STRATEGIC 

851
00:36:44,504 --> 00:36:46,973
PREPAREDNESS AND RESPONSE HAD A 

852
00:36:46,973 --> 00:36:47,874
MEETING IN SEPTEMBER 2023.

853
00:36:47,874 --> 00:36:50,610
IT WAS A JOINT PUBLIC MEETING 

854
00:36:50,610 --> 00:36:51,678
WITH THE NATIONAL ADVISORY 

855
00:36:51,678 --> 00:36:55,649
COMMITTEE ON SENIORS AND 

856
00:36:55,649 --> 00:36:57,851
DISASTER TO DISCUSS RESPECTIVE 

857
00:36:57,851 --> 00:36:58,752
REPORTS AND THEY'RE AVAILABLE 

858
00:36:58,752 --> 00:37:07,694
LINKS PROVIDED THERE.

859
00:37:07,694 --> 00:37:09,329
THE COORDINATING COUNCIL ON 

860
00:37:09,329 --> 00:37:09,829
ACCESS AND MOBILITY.

861
00:37:09,829 --> 00:37:14,734
THIS IS MANAGED BY THE FEDERAL 

862
00:37:14,734 --> 00:37:17,370
TRANSIT DEPARTMENT AND 

863
00:37:17,370 --> 00:37:19,706
DEPARTMENT OF TRANSPORTATION AND

864
00:37:19,706 --> 00:37:24,511
INCLUDED A OCTOBER 2022 MEETING 

865
00:37:24,511 --> 00:37:25,912
AND APPRESSED A NEW STRATEGIC 

866
00:37:25,912 --> 00:37:26,146
PLAN.

867
00:37:26,146 --> 00:37:28,348
I BELIEVE THAT'S POSTED ON OUR 

868
00:37:28,348 --> 00:37:29,315
WEBSITE AS WELL.

869
00:37:29,315 --> 00:37:31,718
IF NOT WE'LL POST IT SHORTLY AND

870
00:37:31,718 --> 00:37:33,753
IT WILL BE AVAILABLE FOR YOU AND

871
00:37:33,753 --> 00:37:36,790
IN NOVEMBER 2022 THEY HAVE AN 

872
00:37:36,790 --> 00:37:38,158
UPCOMING WEBINAR TO TALK ABOUT 

873
00:37:38,158 --> 00:37:40,493
THE STRATEGIC PLAN IF I WANT TO 

874
00:37:40,493 --> 00:37:50,370
LEARN ABOUT ITS CONSENT.

875
00:37:50,370 --> 00:37:53,239
THE INTERAGENCY TASK ON 

876
00:37:53,239 --> 00:37:56,710
TRAUMA-INFORMED CARE BY SAMHSA 

877
00:37:56,710 --> 00:37:58,511
AND TALKS ABOUT FAMILIES 

878
00:37:58,511 --> 00:37:59,746
IMPACTED BY SUBSTANCE USE 

879
00:37:59,746 --> 00:38:08,488
DISORDERS AND OTHER FORM OF 

880
00:38:08,488 --> 00:38:18,631
TRAUMA.

881
00:38:32,779 --> 00:38:35,949
AND THEN I WILL MOVE INTO SOME 

882
00:38:35,949 --> 00:38:38,051
FEDERAL AGENCY UPDATES.

883
00:38:38,051 --> 00:38:39,853
WITH THE PURPOSE OF SHARING ALL 

884
00:38:39,853 --> 00:38:42,655
OF THAT WITH YOU AS A FEDERAL 

885
00:38:42,655 --> 00:38:44,924
ADVISORY COMMITTEE WE DON'T WANT

886
00:38:44,924 --> 00:38:46,893
TO BE DUPLICATIVE AND THERE'S 

887
00:38:46,893 --> 00:38:48,495
LOTS OF FEDERAL COMMITTEES AND 

888
00:38:48,495 --> 00:38:49,763
MANY RELATED TO DISABILITIES.

889
00:38:49,763 --> 00:38:51,197
IT'S IMPORTANT TO BE AWARE OF 

890
00:38:51,197 --> 00:38:54,167
THAT AND WE WANT TO BE 

891
00:38:54,167 --> 00:38:56,035
COORDINATING AND COMPLIMENTING 

892
00:38:56,035 --> 00:39:00,473
THE EFFORTS OF OTHER AGENCIES, 

893
00:39:00,473 --> 00:39:01,975
FEDERAL ADVISORY COMMITTEES.

894
00:39:01,975 --> 00:39:02,709
I'M HAVING TROUBLE ADVANCING 

895
00:39:02,709 --> 00:39:06,946
SLIDES.

896
00:39:06,946 --> 00:39:09,716
AN IMPORTANT ANNOUNCEMENT THAT 

897
00:39:09,716 --> 00:39:12,519
HAS TAKEN PLACE AT NIH IS THAT 

898
00:39:12,519 --> 00:39:13,720
NIH DESIGNATED PEOPLE WITH 

899
00:39:13,720 --> 00:39:15,321
DISABILITIES AS A POPULATION 

900
00:39:15,321 --> 00:39:16,689
WITH HEALTH DISPARITIES.

901
00:39:16,689 --> 00:39:20,493
THIS WAS A VERY IMPORTANT 

902
00:39:20,493 --> 00:39:22,896
DECISION THAT WAS MADE IN 

903
00:39:22,896 --> 00:39:24,497
SEPTEMBER 2023 BY THE NATIONAL 

904
00:39:24,497 --> 00:39:26,733
INSTITUTES OF HEALTH AND THE 

905
00:39:26,733 --> 00:39:27,567
NATIONAL INSTITUTE OF MINORITY 

906
00:39:27,567 --> 00:39:34,641
HEALTH AND HEALTH DISPARITIES.

907
00:39:34,641 --> 00:39:36,376
THIS MEANS PEOPLE WITH 

908
00:39:36,376 --> 00:39:37,811
DISABILITIES HAVE BEEN 

909
00:39:37,811 --> 00:39:38,711
DESIGNATED AS A POPULATION WITH 

910
00:39:38,711 --> 00:39:44,417
HEALTH DISPARITIES TO ENABLE 

911
00:39:44,417 --> 00:39:45,718
WORK ON THESE ISSUES AND THERE 

912
00:39:45,718 --> 00:39:48,021
WAS A CALLING FOR RESEARCH 

913
00:39:48,021 --> 00:39:48,988
APPLICATIONS FOCUSSED 

914
00:39:48,988 --> 00:39:50,323
INTERSECTING IMPACT OF 

915
00:39:50,323 --> 00:39:52,492
DISABILITY, RACE AND ETHNICITY 

916
00:39:52,492 --> 00:39:54,427
AND SOCIO ECONOMIC STATUS ON 

917
00:39:54,427 --> 00:39:56,496
HEALTH CARE ACCESS AND HEALTH 

918
00:39:56,496 --> 00:40:04,771
OUTCOME.

919
00:40:04,771 --> 00:40:09,108
SO IN ADDITION, THE NIH ISSUED A

920
00:40:09,108 --> 00:40:10,176
REQUEST FOR INFORMATION THIS IS 

921
00:40:10,176 --> 00:40:11,845
LIKE A REQUEST FOR PUBLIC 

922
00:40:11,845 --> 00:40:14,714
COMMENTS ON A PROPOSED UPDATE TO

923
00:40:14,714 --> 00:40:16,216
THE NIH MISSION STATEMENT AND 

924
00:40:16,216 --> 00:40:18,318
THE DEADLINE FOR THOSE COMMENTS 

925
00:40:18,318 --> 00:40:18,852
IS NOVEMBER 24.

926
00:40:18,852 --> 00:40:21,254
I'D ENCOURAGE THE COMMITTEE TO 

927
00:40:21,254 --> 00:40:23,523
LOOK AT THAT AND ANYONE IN THE 

928
00:40:23,523 --> 00:40:25,191
LISTENING AUDIENCE WHO IS 

929
00:40:25,191 --> 00:40:27,293
INTERESTED IN THE NIH MISSION 

930
00:40:27,293 --> 00:40:28,761
STATEMENT AND THE FOLLOWING 

931
00:40:28,761 --> 00:40:32,065
CHANGE IS PROPOSED.

932
00:40:32,065 --> 00:40:34,300
THEY WANT TO CHANGE IT TO SEEK 

933
00:40:34,300 --> 00:40:35,768
FUNDAMENTAL -- SORRY, THE OLD 

934
00:40:35,768 --> 00:40:37,337
ONE IS TO SEEK FUNDAMENTAL 

935
00:40:37,337 --> 00:40:38,671
KNOWLEDGE ABOUT THE NATURE AND 

936
00:40:38,671 --> 00:40:39,739
BEHAVIOR OF LIVING SYSTEMS AND 

937
00:40:39,739 --> 00:40:43,676
THE APPLICATION OF THAT 

938
00:40:43,676 --> 00:40:48,114
KNOWLEDGE TO ENHANCE HEALTH, 

939
00:40:48,114 --> 00:40:50,149
LIFE AND REDUCE DISABILITY AND 

940
00:40:50,149 --> 00:40:51,084
SEEK FUNDAMENTAL KNOWLEDGE ABOUT

941
00:40:51,084 --> 00:40:52,485
THE NATURE AND BEHAVIOR OF 

942
00:40:52,485 --> 00:40:54,621
LIVING SYSTEMS AND APPLY THAT 

943
00:40:54,621 --> 00:40:56,189
KNOWLEDGE TO OPTIMIZE HEALTH AND

944
00:40:56,189 --> 00:40:59,392
PREVENT OR REDUCE ILLNESS FOR 

945
00:40:59,392 --> 00:41:00,493
ALL PEOPLE.

946
00:41:00,493 --> 00:41:02,228
THE ACTING DIRECTOR OF NIH 

947
00:41:02,228 --> 00:41:03,830
DR. LARRY TABAK POSTED A BLOG 

948
00:41:03,830 --> 00:41:07,600
ABOUT THIS AND WE HAVE A LINK TO

949
00:41:07,600 --> 00:41:10,003
THE BLOG THERE BUT I'D ENCOURAGE

950
00:41:10,003 --> 00:41:11,804
ANYONE INTERESTED TO CHECK OUT 

951
00:41:11,804 --> 00:41:12,472
THAT REQUEST FOR INFORMATION AND

952
00:41:12,472 --> 00:41:17,510
SUBMIT YOUR COMMENTS.

953
00:41:17,510 --> 00:41:21,547
IN ADDITION THE IDD NATIONAL 

954
00:41:21,547 --> 00:41:24,851
SUMMIT REPORT HIGHLIGHTS HOW 

955
00:41:24,851 --> 00:41:26,719
DATA AS AN EQUITY ISSUE AND THIS

956
00:41:26,719 --> 00:41:32,392
IS IN NOVEMBER 2022 THE ACL 

957
00:41:32,392 --> 00:41:33,326
INITIATIVE ORGANIZED NATIONAL 

958
00:41:33,326 --> 00:41:36,496
SUMMIT AND THERE'S A REPORT YOU 

959
00:41:36,496 --> 00:41:38,965
CAN READ ABOUT THE OUTCOMES FOR 

960
00:41:38,965 --> 00:41:41,401
THAT.

961
00:41:41,401 --> 00:41:44,170
IN ADDITION, HHS ISSUED A NEW 

962
00:41:44,170 --> 00:41:46,239
PROPOSED RULE TO STRENGTHEN 

963
00:41:46,239 --> 00:41:51,945
PROHIBITIONS ON THE BASIS OF 

964
00:41:51,945 --> 00:41:53,446
HUMAN SERVICES PROGRAMS.

965
00:41:53,446 --> 00:41:55,882
THIS WAS AN ANNOUNCEMENT OF THE 

966
00:41:55,882 --> 00:41:58,518
BIDEN-HARRIS ADMINISTRATION.

967
00:41:58,518 --> 00:42:02,121
IT'S A PART OF THE 50th 

968
00:42:02,121 --> 00:42:02,722
ANNIVERSARY OF THE 

969
00:42:02,722 --> 00:42:04,524
REHABILITATION ACT AND THE 

970
00:42:04,524 --> 00:42:06,092
OFFICE OF CIVIL RIGHTS ANNOUNCED

971
00:42:06,092 --> 00:42:08,027
A PROPOSED RULE TO PREVENT 

972
00:42:08,027 --> 00:42:10,296
DISCRIMINATION ON THE BASIS OF 

973
00:42:10,296 --> 00:42:11,497
DISABILITY AND ANY HHS FUNDED 

974
00:42:11,497 --> 00:42:13,399
HEALTH CARE AND HUMAN SERVICES 

975
00:42:13,399 --> 00:42:13,666
PROGRAMS.

976
00:42:13,666 --> 00:42:14,734
WE HAVE A LINK TO THE RELEASE 

977
00:42:14,734 --> 00:42:21,074
THERE FOR THAT.

978
00:42:21,074 --> 00:42:23,509
IN ADDITION, THE CENTERS FOR 

979
00:42:23,509 --> 00:42:25,178
MEDICARE AND MEDICAID SERVICES 

980
00:42:25,178 --> 00:42:27,947
HAVE TAKEN ACTION TO PROTECT 

981
00:42:27,947 --> 00:42:28,481
HEALTH CARE COVERAGE FOR 

982
00:42:28,481 --> 00:42:30,783
CHILDREN AND FAMILIES AND WE'RE 

983
00:42:30,783 --> 00:42:34,253
SUCCESSFULLY ABLE TO ENCOURAGE 

984
00:42:34,253 --> 00:42:36,489
STATES TO MAKE SURE THAT 

985
00:42:36,489 --> 00:42:39,726
INDIVIDUALS WHO MAY HAVE BEEN 

986
00:42:39,726 --> 00:42:42,095
INADVERTENTLY DISENROLLED FROM 

987
00:42:42,095 --> 00:42:43,396
MEDICAID FOR THE CHILDREN'S 

988
00:42:43,396 --> 00:42:45,098
HEALTH INSURANCE PROGRAM AND 

989
00:42:45,098 --> 00:42:46,132
REINSTATE AND TO DATE NEARLY 

990
00:42:46,132 --> 00:42:47,934
HALF A MILLION CHILDREN AND 

991
00:42:47,934 --> 00:42:50,136
FAMILIES FROM 30 STATES WILL BE 

992
00:42:50,136 --> 00:42:50,803
REGAINING THEIR COVERAGE.

993
00:42:50,803 --> 00:42:52,505
THE PRESS RELEASE IS LINKED 

994
00:42:52,505 --> 00:43:01,381
THERE.

995
00:43:01,381 --> 00:43:05,651
THE U.S. DEPARTMENT OF JUSTICE 

996
00:43:05,651 --> 00:43:07,420
PROPOSED A RULE TO STRENGTHEN 

997
00:43:07,420 --> 00:43:08,988
WEB ACCESS FOR PEOPLE WITH 

998
00:43:08,988 --> 00:43:09,322
DISABILITIES.

999
00:43:09,322 --> 00:43:11,024
THERE'S A FEDERAL REGISTER 

1000
00:43:11,024 --> 00:43:13,659
NOTICE ON THE PROPOSED RULE 

1001
00:43:13,659 --> 00:43:16,496
INVITING PUBLIC COMMENT JUST 

1002
00:43:16,496 --> 00:43:18,297
ENDED OCTOBER 3.

1003
00:43:18,297 --> 00:43:28,708
THE RULE IS IN PROCESS.

1004
00:43:29,108 --> 00:43:31,044
TALK ABOUT SOME NON-GOVERNMENTAL

1005
00:43:31,044 --> 00:43:31,344
ACTIVITIES.

1006
00:43:31,344 --> 00:43:33,246
THE PAST JUNE THERE WAS A RECENT

1007
00:43:33,246 --> 00:43:35,815
CONFERENCE TO THE 16th SESSION 

1008
00:43:35,815 --> 00:43:37,083
OF THE CONFERENCE OF STATE'S 

1009
00:43:37,083 --> 00:43:38,484
PARTIES TO THE CONVENTION ON 

1010
00:43:38,484 --> 00:43:40,219
RIGHTS TO PERSONS WITH 

1011
00:43:40,219 --> 00:43:41,354
DISABILITIES AT THE UNITED 

1012
00:43:41,354 --> 00:43:42,989
NATIONS IN NEW YORK AND I WAS 

1013
00:43:42,989 --> 00:43:44,490
ABLE TO BE APART OF THIS EVENT 

1014
00:43:44,490 --> 00:43:46,759
THAT WAS SPONSORED BY THE AUTISM

1015
00:43:46,759 --> 00:43:49,495
ALLIANCE OF CANADA AND IT WAS AN

1016
00:43:49,495 --> 00:43:51,297
AUTISM FOCUSSED EVENT CALLED 

1017
00:43:51,297 --> 00:43:52,498
CHALLENGES, BEST PRACTICES AND 

1018
00:43:52,498 --> 00:43:54,600
AWAY FORWARD LOOKING AT NATIONAL

1019
00:43:54,600 --> 00:43:57,170
AUTISM STRATEGIES THROUGH THE 

1020
00:43:57,170 --> 00:44:01,040
LENS OF THE CRPD.

1021
00:44:01,040 --> 00:44:02,375
THEY HAD REPRESENTATIVES OF A 

1022
00:44:02,375 --> 00:44:04,477
NUMBER OF COUNTRIES THAT SHARED 

1023
00:44:04,477 --> 00:44:06,412
WHAT THEY'RE DOING TO DEVELOP 

1024
00:44:06,412 --> 00:44:07,447
NATIONAL AUTISM STRATEGIES FOR 

1025
00:44:07,447 --> 00:44:10,850
THEIR POPULATIONS AND HOW THOSE 

1026
00:44:10,850 --> 00:44:13,753
ALIGN WITH THE CRPD AND 

1027
00:44:13,753 --> 00:44:15,188
PROTECTION OF HUMAN RIGHTS FOR 

1028
00:44:15,188 --> 00:44:16,489
PEOPLE WITH DISABILITIES AND I 

1029
00:44:16,489 --> 00:44:20,226
WAS ABLE TO SPEAK ON THE IACC 

1030
00:44:20,226 --> 00:44:22,161
STRATEGIC PLAN AND OURS IS THE 

1031
00:44:22,161 --> 00:44:23,129
FIRST STRATEGIC PLAN IN THE 

1032
00:44:23,129 --> 00:44:25,164
WORLD FOR AUTISM.

1033
00:44:25,164 --> 00:44:26,666
IT'S BEEN AROUND SINCE 2009 AND 

1034
00:44:26,666 --> 00:44:31,037
SO I WAS ABLE TO SHARE WHAT OUR 

1035
00:44:31,037 --> 00:44:32,872
NEW STRATEGY PLAN WAS SHAPING UP

1036
00:44:32,872 --> 00:44:35,575
TO BE AND THERE WERE SEVERAL 

1037
00:44:35,575 --> 00:44:38,344
COUNTRIES THAT ARE AIMING TO GET

1038
00:44:38,344 --> 00:44:40,480
A STRATEGIC PLAN PUT TOGETHER 

1039
00:44:40,480 --> 00:44:41,447
INCLUDING CANADA WHICH HAD 

1040
00:44:41,447 --> 00:44:43,516
RECENT LEGISLATION TO CREATE A 

1041
00:44:43,516 --> 00:44:45,384
NATIONAL STRATEGY AND AUSTRALIA 

1042
00:44:45,384 --> 00:44:47,887
WORKING ON THEIRS AND THE U.K. 

1043
00:44:47,887 --> 00:44:49,155
HAS ONE.

1044
00:44:49,155 --> 00:44:51,224
SO YETTA.

1045
00:44:51,224 --> 00:44:52,959
>> QUICK QUESTION, SUSAN.

1046
00:44:52,959 --> 00:44:55,695
DID THEY PROVIDE FEEDBACK WHEN 

1047
00:44:55,695 --> 00:44:57,163
YOU PRESENTED ON OUR STRATEGIC 

1048
00:44:57,163 --> 00:44:57,363
PLAN?

1049
00:44:57,363 --> 00:44:58,097
ANY THOUGHTS SHARED?

1050
00:44:58,097 --> 00:44:59,232
>> IT WAS A PANEL.

1051
00:44:59,232 --> 00:45:01,000
I ONLY HAD A FEW MINUTES TO 

1052
00:45:01,000 --> 00:45:07,840
PRESENT SO IT WASN'T VERY LONG 

1053
00:45:07,840 --> 00:45:09,542
AND UNFORTUNATELY THE RECORDING 

1054
00:45:09,542 --> 00:45:12,445
DIDN'T TURN OUT AND IT WAS' 

1055
00:45:12,445 --> 00:45:12,879
GREAT PRESENTATION.

1056
00:45:12,879 --> 00:45:15,948
PERHAPS WE'LL BE ABLE TO PUT 

1057
00:45:15,948 --> 00:45:17,583
SOMETHING TOGETHER TO DO ANOTHER

1058
00:45:17,583 --> 00:45:18,951
FORM OF THE PRESENTATION BECAUSE

1059
00:45:18,951 --> 00:45:20,486
IT WAS INFORMATIVE HEARING FROM 

1060
00:45:20,486 --> 00:45:22,555
COUNTRIES AND LOOKING AT HOW OUR

1061
00:45:22,555 --> 00:45:24,457
PLAN HITS MOST THE MAIN POINTS 

1062
00:45:24,457 --> 00:45:27,793
OF THE CRPD THOUGH WE DIDN'T 

1063
00:45:27,793 --> 00:45:29,095
EXACTLY DESIGN IT ON PURPOSE BUT

1064
00:45:29,095 --> 00:45:32,498
IN OUR COUNTRY WE HAVE 

1065
00:45:32,498 --> 00:45:33,232
DISABILITY RIGHTS LEGISLATION 

1066
00:45:33,232 --> 00:45:34,534
THAT ARE ALSO OUR FOUNDATION IN 

1067
00:45:34,534 --> 00:45:36,335
THE U.S. BUT IT WAS INTERESTING 

1068
00:45:36,335 --> 00:45:37,670
TO SEE HOW THIS COMPARED WITH 

1069
00:45:37,670 --> 00:45:38,738
THE STRATEGIES OF OTHER 

1070
00:45:38,738 --> 00:45:43,042
COUNTRIES.

1071
00:45:43,042 --> 00:45:45,478
OF COURSE HERE IN THE U.S. WE'RE

1072
00:45:45,478 --> 00:45:46,979
TRYING TO BE SUPPORTIVE OF A 

1073
00:45:46,979 --> 00:45:49,148
STRATEGY FOR AUTISM AND OUR 

1074
00:45:49,148 --> 00:45:50,716
OFFICE WILL CERTAINLY BE A PART 

1075
00:45:50,716 --> 00:45:51,551
OF DISCUSSIONS WITH OTHERS THAT 

1076
00:45:51,551 --> 00:45:53,319
WANT ASSISTANCE OR HAVE 

1077
00:45:53,319 --> 00:45:53,886
QUESTIONS ABOUT THAT.

1078
00:45:53,886 --> 00:45:57,557
BUT EXCITED THAT WE HAVE A NEW 

1079
00:45:57,557 --> 00:46:00,493
NATIONAL STRATEGIC PLAN OUT ON 

1080
00:46:00,493 --> 00:46:02,962
THE STREET NOW.

1081
00:46:02,962 --> 00:46:05,765
THIS WAS AN EXCITING EVENT.

1082
00:46:05,765 --> 00:46:14,040
AND ALSO I WANTED TO MENTION THE

1083
00:46:14,040 --> 00:46:17,910
NSAR MEETING IN STOCKHOLM, 

1084
00:46:17,910 --> 00:46:18,144
SWEDEN.

1085
00:46:18,144 --> 00:46:19,045
A WONDERFUL MEETING WITH 

1086
00:46:19,045 --> 00:46:20,446
RESEARCHERS AROUND THE WORLD.

1087
00:46:20,446 --> 00:46:22,215
THERE WERE KEY NOTE 

1088
00:46:22,215 --> 00:46:22,915
PRESENTATIONS LISTED THERE AND 

1089
00:46:22,915 --> 00:46:25,985
SEVERAL PEOPLE AROUND THE TABLE 

1090
00:46:25,985 --> 00:46:27,987
WERE THERE AND WE MAY NOT HAVE 

1091
00:46:27,987 --> 00:46:30,089
SEEN EACH OTHER AT THE IACC BUT 

1092
00:46:30,089 --> 00:46:31,857
WE SAW EACH OTHER IN STOCKHOLM 

1093
00:46:31,857 --> 00:46:33,960
AND I'D ENCOURAGE YOU TO CHECK 

1094
00:46:33,960 --> 00:46:35,461
OUT ANYTHING ON THE WEBSITE 

1095
00:46:35,461 --> 00:46:36,629
ABOUT YOUR DATES FROM THAT 

1096
00:46:36,629 --> 00:46:37,330
MEETING.

1097
00:46:37,330 --> 00:46:41,234
THE NEXT ONE IS IN MELBOURNE, 

1098
00:46:41,234 --> 00:46:43,736
AUSTRALIA NEXT MAY.

1099
00:46:43,736 --> 00:46:48,507
THERE WAS THE RECENT CONFERENCE 

1100
00:46:48,507 --> 00:46:51,277
ON THE STANFORD NEURODIVERSITY 

1101
00:46:51,277 --> 00:46:55,181
SUMMIT WITH EMPLOYMENT, MENTAL 

1102
00:46:55,181 --> 00:46:56,682
HEALTH, HIGHER EDUCATION AND 

1103
00:46:56,682 --> 00:46:59,018
K-12 EDUCATION AND HUMAN RIGHTS.

1104
00:46:59,018 --> 00:47:02,722
IT'S ALWAYS AN OUTSTANDING 

1105
00:47:02,722 --> 00:47:08,494
CONFERENCE FOR PEOPLE FROM 

1106
00:47:08,494 --> 00:47:11,897
AROUND THE NEURODIVERGENT 

1107
00:47:11,897 --> 00:47:13,532
COMMUNITY AND I ENCOURAGE YOU TO

1108
00:47:13,532 --> 00:47:14,734
CHECK OUT THE RECORDING IF YOU 

1109
00:47:14,734 --> 00:47:18,170
WEREN'T ABLE TO ATTEND.

1110
00:47:18,170 --> 00:47:26,479
UPCOMING IS THE OCALICONLINE 

1111
00:47:26,479 --> 00:47:27,847
PRESENTATION WITH PRESENTATIONS 

1112
00:47:27,847 --> 00:47:29,515
ON NEURODIVERSITY AND RELATED 

1113
00:47:29,515 --> 00:47:32,118
ISSUES AND I'LL BE SHARING SOME 

1114
00:47:32,118 --> 00:47:33,452
OF OUR WORK OF THE STRATEGIC 

1115
00:47:33,452 --> 00:47:36,489
PLAN ON THE CONFERENCE TO HELP 

1116
00:47:36,489 --> 00:47:40,526
DISSEMINATE THAT.

1117
00:47:40,526 --> 00:47:42,561
EYE REPORT ON HEALTH CARE 

1118
00:47:42,561 --> 00:47:43,696
EXPERIENCES DURING THE COVID-19 

1119
00:47:43,696 --> 00:47:46,932
PANDEMIC THAT IS A NEW NATIONAL 

1120
00:47:46,932 --> 00:47:48,234
AUTISM INDICATORS REPORT.

1121
00:47:48,234 --> 00:47:52,338
I ENCOURAGE YOU TO LOOK AT THAT 

1122
00:47:52,338 --> 00:47:55,875
RELEASED BY THE DREXEL AUTISM 

1123
00:47:55,875 --> 00:47:56,642
INSTITUTE POLICY AND ANALYTIC 

1124
00:47:56,642 --> 00:48:01,113
CENTER.

1125
00:48:01,113 --> 00:48:02,581
THAT CONCLUDES THE UPDATE.

1126
00:48:02,581 --> 00:48:03,783
DOES ANYONE HAVE ANY QUESTIONS 

1127
00:48:03,783 --> 00:48:11,624
ABOUT ANYTHING I'VE MENTIONED?

1128
00:48:11,624 --> 00:48:13,392
I WANTED TO GIVE THAT OVERVIEW 

1129
00:48:13,392 --> 00:48:14,527
BECAUSE IT'S HARD TO KEEP UP 

1130
00:48:14,527 --> 00:48:15,761
WITH EVERYTHING AND WANTED TO 

1131
00:48:15,761 --> 00:48:17,129
GIVE YOU AN OVERVIEW OF THE 

1132
00:48:17,129 --> 00:48:18,864
HIGHLIGHTS SINCE THE LAST 

1133
00:48:18,864 --> 00:48:19,465
MEETING.

1134
00:48:19,465 --> 00:48:21,467
SO WE HAVE MOVED ROUND ROBIN UP 

1135
00:48:21,467 --> 00:48:22,234
TO THIS SECTION OF THE MEETING 

1136
00:48:22,234 --> 00:48:24,503
TO GIVE YOU A CHANCE NOW AFTER 

1137
00:48:24,503 --> 00:48:25,871
JUST HEARING THOSE UPDATES TO 

1138
00:48:25,871 --> 00:48:26,806
SHARE YOUR UPDATES.

1139
00:48:26,806 --> 00:48:30,710
I'LL TURN IT OVER TO JOSH.

1140
00:48:30,710 --> 00:48:32,478
>> LET ME REITERATE IF
THERE'S 

1141
00:48:32,478 --> 00:48:35,147
QUESTIONS FOR SUSAN I'LL PAUSE 

1142
00:48:35,147 --> 00:48:36,482
FOR A MOMENT AND ALLOW PEOPLE TO

1143
00:48:36,482 --> 00:48:44,824
RAISE THEM.

1144
00:48:44,824 --> 00:48:46,792
>> THANK YOU, SUSAN FOR
THE 

1145
00:48:46,792 --> 00:48:47,560
THOROUGH UPDATE.

1146
00:48:47,560 --> 00:48:49,195
WE HAVE ONE ITEM WE WANTED TO 

1147
00:48:49,195 --> 00:48:50,129
SHARE FROM THE NATIONAL 

1148
00:48:50,129 --> 00:48:52,331
INSTITUTES OF MENTAL HEALTH.

1149
00:48:52,331 --> 00:48:54,500
I'LL TAKE THE CHAIR'S 

1150
00:48:54,500 --> 00:48:55,768
PREROGATIVE TO PRESENT FIRST AND

1151
00:48:55,768 --> 00:48:57,002
WE HAVE PEOPLE WHAT WANT TO MAKE

1152
00:48:57,002 --> 00:49:00,606
SURE THEY HAVE A CHANCE.

1153
00:49:00,606 --> 00:49:00,773
SAM.

1154
00:49:00,773 --> 00:49:01,440
YOU RAISED YOUR HAND.

1155
00:49:01,440 --> 00:49:03,309
IS THAT TO PROVIDE AN UPDATE OR 

1156
00:49:03,309 --> 00:49:10,683
ASK A QUESTION OF SUSAN?

1157
00:49:10,683 --> 00:49:11,917
>> JUST AN UPDATE.

1158
00:49:11,917 --> 00:49:19,358
>> WE'LL HAVE YOU NEXT.

1159
00:49:19,358 --> 00:49:22,762
I MENTIONED THIS IS THE 75th 

1160
00:49:22,762 --> 00:49:25,765
ANNIVERSARY FOR THE NATIONAL 

1161
00:49:25,765 --> 00:49:27,032
INSTITUTE OF HEALTH AND COMMENTS

1162
00:49:27,032 --> 00:49:30,102
ON EVENTS YOU CAN ATTEND OR LOOK

1163
00:49:30,102 --> 00:49:31,437
FORWARD TO.

1164
00:49:31,437 --> 00:49:32,938
NEXT SLIDE.

1165
00:49:32,938 --> 00:49:35,674
STARTING LAST MONTH WE BEGAN A 

1166
00:49:35,674 --> 00:49:39,612
YEAR-LONG CELEBRATION OF 75 

1167
00:49:39,612 --> 00:49:42,114
YEARS OF UNDERSTANDING THE 

1168
00:49:42,114 --> 00:49:44,250
TREATMENT OF MENTAL ILLNESSES.

1169
00:49:44,250 --> 00:49:46,986
WE PLANNED A VARIETY OF 

1170
00:49:46,986 --> 00:49:49,822
ACTIVITIES INCLUDING SYMPOSIA, 

1171
00:49:49,822 --> 00:49:50,589
SESSIONS AND SCIENTIFIC MEETINGS

1172
00:49:50,589 --> 00:49:52,425
AND LECTURES AND MEDIA THAT 

1173
00:49:52,425 --> 00:49:54,660
SHARES STORIES, DISCOVERIES AND 

1174
00:49:54,660 --> 00:49:55,194
INSPIRATION.

1175
00:49:55,194 --> 00:49:58,831
WE HAVE A NUMBER OF PODCASTS WE 

1176
00:49:58,831 --> 00:49:59,799
WILL BE RELEASING THROUGHOUT THE

1177
00:49:59,799 --> 00:50:00,232
YEAR.

1178
00:50:00,232 --> 00:50:06,205
VIDEO MESSAGES, STORIES ABOUT 

1179
00:50:06,205 --> 00:50:12,478
SCIENCE THAT'S BEEN ACCOMPLISHED

1180
00:50:12,478 --> 00:50:13,913
AND STORIES FOR THE FUTURE.

1181
00:50:13,913 --> 00:50:23,889
 WE HAVE A WEBSITE 

1182
00:50:23,889 --> 00:50:28,794
NIMH.NIHNIMH.NIH.

1183
00:50:28,794 --> 00:50:30,229
NIMH.NIHNIMH.NIH.

1184
00:50:30,229 --> 00:50:30,729
NIMH.NIH.gov/75 YEARS.

1185
00:50:30,729 --> 00:50:32,498
CAN FOLLOW US AS WE ADD ITEMS 

1186
00:50:32,498 --> 00:50:37,102
THROUGHOUT THE YEAR.

1187
00:50:37,102 --> 00:50:37,736
THAT'S IT.

1188
00:50:37,736 --> 00:50:41,273
WITH THAT WE'LL GO IN THE ROUND 

1189
00:50:41,273 --> 00:50:41,474
ROBIN.

1190
00:50:41,474 --> 00:50:51,884
WE START WITH SAM CRANE.

1191
00:50:59,124 --> 00:51:01,627
>> THE THING I WANTED TO
SHARE 

1192
00:51:01,627 --> 00:51:02,728
FROM QUALITY TRUST IS WE'VE JUST

1193
00:51:02,728 --> 00:51:05,698
BEEN AWARDED CONTINUATION OF OUR

1194
00:51:05,698 --> 00:51:10,302
GRANT FROM THE OFFICE OF 

1195
00:51:10,302 --> 00:51:11,604
VIOLENCE AGAINST WOMEN TO 

1196
00:51:11,604 --> 00:51:14,707
DEVELOP BEST PRACTICES TO 

1197
00:51:14,707 --> 00:51:16,008
SUPPORT PEOPLE WITH INTELLECTUAL

1198
00:51:16,008 --> 00:51:18,244
AND DEVELOPMENT DISABILITIES 

1199
00:51:18,244 --> 00:51:20,246
BOTH MEN AND WOMEN WHO HAVE 

1200
00:51:20,246 --> 00:51:23,883
SURVIVED SEXUAL VIOLENCE AND 

1201
00:51:23,883 --> 00:51:25,551
HOPEFULLY THAT CAN INCLUDE 

1202
00:51:25,551 --> 00:51:26,719
APPROPRIATE EDUCATION TO 

1203
00:51:26,719 --> 00:51:32,458
RECOGNIZE BOTH HEALTHY SEXUAL 

1204
00:51:32,458 --> 00:51:33,959
RELATIONSHIPS AND INAPPROPRIATE 

1205
00:51:33,959 --> 00:51:39,765
OR EITHER ABUSIVE, 

1206
00:51:39,765 --> 00:51:41,033
NON-CONSENSUAL OR EXPLOITIVE 

1207
00:51:41,033 --> 00:51:41,367
RELATIONSHIPS.

1208
00:51:41,367 --> 00:51:44,503
WE'RE EXCITED ABOUT THAT AND 

1209
00:51:44,503 --> 00:51:47,706
WE'LL SOON RELEASING THE REPORT 

1210
00:51:47,706 --> 00:51:50,442
FROM THE FIRST ROUND OF THAT 

1211
00:51:50,442 --> 00:51:50,643
GRANT.

1212
00:51:50,643 --> 00:51:54,413
KEEP AN EYE OUT.

1213
00:51:54,413 --> 00:51:56,482
>> THANK YOU, SAM.

1214
00:51:56,482 --> 00:52:06,725
NEXT TO PAUL.

1215
00:52:08,160 --> 00:52:09,995
>> WE RECEIVED PUBLIC
COMMENTS 

1216
00:52:09,995 --> 00:52:11,764
ABOUT THE TRAINING OF 

1217
00:52:11,764 --> 00:52:12,131
PEDIATRICIANS.

1218
00:52:12,131 --> 00:52:14,867
THERE'S BEEN THE ACCREDITATION 

1219
00:52:14,867 --> 00:52:15,868
COUNCIL ON THE COUNCIL ON 

1220
00:52:15,868 --> 00:52:18,637
EDUCATION TO ELIMINATE THE 

1221
00:52:18,637 --> 00:52:19,705
REQUIREMENT THE PEDIATRIC 

1222
00:52:19,705 --> 00:52:22,942
FACULTY INCLUDE A BOARD 

1223
00:52:22,942 --> 00:52:24,209
CERTIFIED DEVELOPMENTAL 

1224
00:52:24,209 --> 00:52:25,544
PEDIATRICIAN AND TO ELIMINATE 

1225
00:52:25,544 --> 00:52:28,347
THE ADEQUATE FOR QUOTE, UNQUOTE,

1226
00:52:28,347 --> 00:52:29,915
ADEQUATE EXPOSURE TO TYPICAL 

1227
00:52:29,915 --> 00:52:31,450
DEVELOPMENT AND LONGITUDINALLY 

1228
00:52:31,450 --> 00:52:34,219
AND TO THE DEVELOPMENT OF 

1229
00:52:34,219 --> 00:52:34,820
CHILDREN WITH SPECIAL HEALTH 

1230
00:52:34,820 --> 00:52:35,287
CARE NEEDS.

1231
00:52:35,287 --> 00:52:37,756
THERE WERE PUBLIC COMMENTS AND I

1232
00:52:37,756 --> 00:52:39,925
THINK ALSO STRONG ADVOCACY FROM 

1233
00:52:39,925 --> 00:52:40,826
THE MEMBERS OF THIS COMMITTEE 

1234
00:52:40,826 --> 00:52:44,029
THOSE CHANGES WOULD REALLY BE 

1235
00:52:44,029 --> 00:52:49,101
DETRIMENTAL TO THE CARE OF 

1236
00:52:49,101 --> 00:52:53,639
CHILDREN WITH AUTISM.

1237
00:52:53,639 --> 00:52:55,674
IN FACT THE COMMIT ISSUED A 

1238
00:52:55,674 --> 00:52:56,709
STATEMENT ABOUT THAT AND 

1239
00:52:56,709 --> 00:52:58,677
REFLECTED ON THE FACT THAT OUR 

1240
00:52:58,677 --> 00:53:00,479
STRATEGIC PLAN TOUCHES ON THIS 

1241
00:53:00,479 --> 00:53:02,247
ISSUE AND THE IMPORTANCE AND THE

1242
00:53:02,247 --> 00:53:05,618
RECENT NIH ANNOUNCEMENT THAT IS 

1243
00:53:05,618 --> 00:53:06,285
RECOGNIZING INDIVIDUALS WITH 

1244
00:53:06,285 --> 00:53:11,724
DISABILITIES AS BEING AFFECTED 

1245
00:53:11,724 --> 00:53:16,428
BY HEALTH CARE SO A PARTIAL WIN.

1246
00:53:16,428 --> 00:53:20,432
THEY RETRACTED THE DELETION SO 

1247
00:53:20,432 --> 00:53:23,135
THEY'LL REQUIRE HAVING 

1248
00:53:23,135 --> 00:53:24,503
DEVELOPMENTAL PEDIATRICIANS FOR 

1249
00:53:24,503 --> 00:53:25,804
PEDIATRIC RESIDENCIES BUT 

1250
00:53:25,804 --> 00:53:29,408
LEADING THE REQUIREMENT FOR 

1251
00:53:29,408 --> 00:53:32,478
ADEQUATE EXPOSURE TO TYPICAL 

1252
00:53:32,478 --> 00:53:33,846
LONGITUDINAL DEVELOPMENT IN 

1253
00:53:33,846 --> 00:53:34,647
CHILDREN WITH SPECIAL HEALTH 

1254
00:53:34,647 --> 00:53:35,180
CARE NEEDS.

1255
00:53:35,180 --> 00:53:37,383
I THINK PEDIATRICIANS IN 

1256
00:53:37,383 --> 00:53:40,586
TRAINING HAVE NEVER QUITE GOTTEN

1257
00:53:40,586 --> 00:53:43,856
FULLY ADEQUATE EXPOSURE.

1258
00:53:43,856 --> 00:53:45,324
PEDIATRICIANS CONTINUE TO LEARN 

1259
00:53:45,324 --> 00:53:48,494
A LOT AFTER THEIR RESIDENCIES 

1260
00:53:48,494 --> 00:53:49,328
HAVE CONCLUDE AND WILL CONTINUE 

1261
00:53:49,328 --> 00:53:51,296
I HOPE AND THE ADVOCACY OF THIS 

1262
00:53:51,296 --> 00:53:52,498
COMMITTEE WAS AN IMPORTANT PART 

1263
00:53:52,498 --> 00:53:57,302
OF THE PLANS.

1264
00:53:57,302 --> 00:54:00,739
>> THANK YOU, PAUL AND
THANKS TO

1265
00:54:00,739 --> 00:54:01,273
THE COMMITTEE.

1266
00:54:01,273 --> 00:54:03,676
THANKS TO SUSAN AND HER STAFF 

1267
00:54:03,676 --> 00:54:04,476
FOR FOLLOWING THROUGH OVER THE 

1268
00:54:04,476 --> 00:54:06,178
NEXT SEVERAL DAYS TO PUT OUT A 

1269
00:54:06,178 --> 00:54:15,754
STATEMENT ON OUR BEHALF.

1270
00:54:15,754 --> 00:54:17,222
>> I AGREE, PAUL.

1271
00:54:17,222 --> 00:54:20,492
I'VE HAD TO BASICALLY SUPPORT MY

1272
00:54:20,492 --> 00:54:22,795
SON'S PEDIATRICIAN THROUGH THE 

1273
00:54:22,795 --> 00:54:24,496
YEARS IN HELPING HIM SUPPORT 

1274
00:54:24,496 --> 00:54:29,368
OTHER FAMILIES BECAUSE THEY 

1275
00:54:29,368 --> 00:54:32,504
DON'T HAVE THAT KNOWLEDGE AND 

1276
00:54:32,504 --> 00:54:35,741
EXCITED TO PUSH THAT THROUGH.

1277
00:54:35,741 --> 00:54:39,478
ON OTHER NOTE I'M EXCITED TO 

1278
00:54:39,478 --> 00:54:42,247
SHARE WORK WITH FAMILY VOICES WE

1279
00:54:42,247 --> 00:54:48,120
RECENTLY PUBLISHED A WHITE PAPER

1280
00:54:48,120 --> 00:54:49,188
AND EXECUTIVE SUMMARY ON THE 

1281
00:54:49,188 --> 00:54:51,724
WORK WE HAVE DONE FUNDED THROUGH

1282
00:54:51,724 --> 00:54:55,060
PATI

1283
00:54:55,060 --> 00:54:56,495
PATIENT-CENTERED OUTCOME 

1284
00:54:56,495 --> 00:54:58,163
INSTITUTE EUGENE WASHINGTON 

1285
00:54:58,163 --> 00:55:00,799
AWARD THE TITLE IS 

1286
00:55:00,799 --> 00:55:02,735
PATIENT-CENTER TO ENGAGE THE 

1287
00:55:02,735 --> 00:55:03,302
AFRICAN AMERICAN COMMUNITY.

1288
00:55:03,302 --> 00:55:06,972
OVER THE LAST TWO YEARS WE HAVE 

1289
00:55:06,972 --> 00:55:11,777
WORKED TO ENGAGE OVER 200 

1290
00:55:11,777 --> 00:55:14,747
STAKEHOLDERS, RESEARCHERS, 

1291
00:55:14,747 --> 00:55:18,751
SELF-ADVOCATES, FAMILY MEMBERS, 

1292
00:55:18,751 --> 00:55:23,589
PROVIDERS, COMMUNITY PROVIERS A 

1293
00:55:23,589 --> 00:55:25,057
THE COUNTRY AND HELPED SHAPE 

1294
00:55:25,057 --> 00:55:26,725
WHAT THE RESEARCH AGENDA IS AND 

1295
00:55:26,725 --> 00:55:28,227
WE'RE REALLY EXCITED ABOUT IT.

1296
00:55:28,227 --> 00:55:31,797
TO GIVE AN OUTLINE OF WHAT IS 

1297
00:55:31,797 --> 00:55:32,064
INCLUDED.

1298
00:55:32,064 --> 00:55:33,899
THERE'S THREE KEY STRATEGIES FOR

1299
00:55:33,899 --> 00:55:36,235
RESEARCHERS TO ENSURE THEIR 

1300
00:55:36,235 --> 00:55:38,737
RESEARCH IS CULTURALLY 

1301
00:55:38,737 --> 00:55:40,439
RESPONSIVE AND RELEVANT TO THE 

1302
00:55:40,439 --> 00:55:41,440
AFRICAN AMERICAN COMMUNITY.

1303
00:55:41,440 --> 00:55:43,509
IT PROVIDES EQUAL OPPORTUNITIES 

1304
00:55:43,509 --> 00:55:45,043
FOR AFRICAN AMERICANS TO 

1305
00:55:45,043 --> 00:55:46,311
PARTICIPATE AND CONSIDERS HOW 

1306
00:55:46,311 --> 00:55:47,646
RESEARCH RESULTS WILL BE SHARED 

1307
00:55:47,646 --> 00:55:50,749
BACK WITH THE COMMUNITY IN WAYS 

1308
00:55:50,749 --> 00:55:56,822
ACCESSIBLE AND ACTIONABLE.

1309
00:55:56,822 --> 00:55:59,892
AGAIN I WANT TO SHARE MY 

1310
00:55:59,892 --> 00:56:00,993
APPRECIATION IN THAT WORK AND 

1311
00:56:00,993 --> 00:56:02,694
HOPE YOU'LL TAKE TIME TO REVIEW 

1312
00:56:02,694 --> 00:56:04,797
IT AND READ IT AND ADOPT SOME OF

1313
00:56:04,797 --> 00:56:06,865
THESE THINGS IN YOUR WORK IF 

1314
00:56:06,865 --> 00:56:07,866
YOU'RE NOT ALREADY DOING SO.

1315
00:56:07,866 --> 00:56:08,433
THANK YOU FOR GIVING ME THE 

1316
00:56:08,433 --> 00:56:12,204
TABLE.

1317
00:56:12,204 --> 00:56:14,306
>> THANK YOU, YETTA.

1318
00:56:14,306 --> 00:56:18,143
FANTASTIC I LOOK FORWARD TO 

1319
00:56:18,143 --> 00:56:20,479
SHARING THAT WITH OUR NIMHD 

1320
00:56:20,479 --> 00:56:20,913
RESEARCHERS BROADLY.

1321
00:56:20,913 --> 00:56:31,423
SCOTT ROBERTSON, NEXT TO YOU.

1322
00:56:33,659 --> 00:56:38,096
>> AFTER THE MEETING ITE 
-- 

1323
00:56:38,096 --> 00:56:40,232
I'LL GET THE LINKS FOR THESE.

1324
00:56:40,232 --> 00:56:41,867
FOR NATIONAL DISABILITY 

1325
00:56:41,867 --> 00:56:42,501
EMPLOYMENT AWARENESS MONTH WE 

1326
00:56:42,501 --> 00:56:46,205
HAVE A WEBSITE FOR THAT AND A 

1327
00:56:46,205 --> 00:56:50,008
BLOG POST FROM ANUPA WITH 

1328
00:56:50,008 --> 00:56:52,477
REMARKS ON ENDING NATIONAL 

1329
00:56:52,477 --> 00:56:55,214
HISPANIC HERITAGE MONTH WE HAVE 

1330
00:56:55,214 --> 00:56:57,115
A BLOG POST FROM MY COLLEAGUES 

1331
00:56:57,115 --> 00:57:00,485
FROM ODEP EMPLOYMENT OF 

1332
00:57:00,485 --> 00:57:03,789
HISPANICS WITH STABILITIES IN 

1333
00:57:03,789 --> 00:57:06,391
SKILLED TRADE PROFESSIONALS AND 

1334
00:57:06,391 --> 00:57:07,826
NATIONAL HISPANIC HERITAGE MONTH

1335
00:57:07,826 --> 00:57:09,995
I BELIEVE ENDS ON THE 15th.

1336
00:57:09,995 --> 00:57:15,234
AND YOUNG ADULTS FROM THE AUTISM

1337
00:57:15,234 --> 00:57:17,135
SPECTRUM PROJECT ON 

1338
00:57:17,135 --> 00:57:18,237
REHABILITATION SERVICES AND I'LL

1339
00:57:18,237 --> 00:57:19,771
MAKE SURE THE LINKS ARE IN THE 

1340
00:57:19,771 --> 00:57:22,341
BRIEF UPDATE AND NATIONAL 

1341
00:57:22,341 --> 00:57:23,141
APPRENTICESHIP WEEK IS HAPPENING

1342
00:57:23,141 --> 00:57:23,709
NEXT MONTH.

1343
00:57:23,709 --> 00:57:29,982
SO OUR PARTNERSHIP ON INCLUSIVE 

1344
00:57:29,982 --> 00:57:31,650
PARTNERSHIP IS GOING TO BE 

1345
00:57:31,650 --> 00:57:34,453
EMPHASIZING THAT MONTH AND HOW 

1346
00:57:34,453 --> 00:57:35,721
APPRENTICESHIP SUPPORT, 

1347
00:57:35,721 --> 00:57:40,492
INCLUSIVE PATHWAYS FOR PEOPLE 

1348
00:57:40,492 --> 00:57:42,461
WITH DISABILITIES INCLUDING 

1349
00:57:42,461 --> 00:57:43,295
NEURODIVERGENT PEOPLE INCLUDING 

1350
00:57:43,295 --> 00:57:44,229
AUTISTIC PEOPLE.

1351
00:57:44,229 --> 00:57:48,500
>> THANK YOU, SCOTT.

1352
00:57:48,500 --> 00:57:53,939
ALISON.

1353
00:57:53,939 --> 00:57:55,140
>> GOOD MORNING.

1354
00:57:55,140 --> 00:58:00,279
I'M GOING TO INCLUDE ALL THE 

1355
00:58:00,279 --> 00:58:01,079
RELEVANT LINKS.

1356
00:58:01,079 --> 00:58:02,414
SUPPORTED EMPLOYMENT 

1357
00:58:02,414 --> 00:58:05,150
DEMONSTRATION PROJECT HAS 

1358
00:58:05,150 --> 00:58:06,852
CONCLUDED FINDING SIGNIFICANTLY 

1359
00:58:06,852 --> 00:58:07,753
HIGHER RATES FOR THOSE WHO 

1360
00:58:07,753 --> 00:58:08,854
RECEIVE THE INTERVENTION.

1361
00:58:08,854 --> 00:58:12,491
THE REPORT AND PUBLIC USE FILES 

1362
00:58:12,491 --> 00:58:14,993
ARE NOW AVAILABLE.

1363
00:58:14,993 --> 00:58:16,194
CONGRATULATIONS TO THE SIX 

1364
00:58:16,194 --> 00:58:18,096
APPLICANTS SELECTED FOR THE 

1365
00:58:18,096 --> 00:58:19,665
FIVE-YEAR RETIREMENT AND 

1366
00:58:19,665 --> 00:58:20,766
DISABILITY RESEARCH CONSORTIUM 

1367
00:58:20,766 --> 00:58:23,335
COOPERATIVE AGREEMENT AWARDS.

1368
00:58:23,335 --> 00:58:29,775
THIS IS A $12 MILLION PER YEAR 

1369
00:58:29,775 --> 00:58:33,312
AWARD SPLIT BETWEEN THE PARTNER 

1370
00:58:33,312 --> 00:58:33,845
CENTERS.

1371
00:58:33,845 --> 00:58:36,081
WE HAVE INFORMATION ABOUT SOCIAL

1372
00:58:36,081 --> 00:58:37,849
SECURITY SERVICES FOR HISPANIC 

1373
00:58:37,849 --> 00:58:40,485
COMMUNITY AND LINKS TO OUR 

1374
00:58:40,485 --> 00:58:41,653
SPANISH WEBSITE AND PUBLICATION 

1375
00:58:41,653 --> 00:58:42,788
IN SPANISH.

1376
00:58:42,788 --> 00:58:45,157
FOURTH, WE'RE LOOKING FOR YOUR 

1377
00:58:45,157 --> 00:58:51,396
COMMENTS REGARDING OUR ROW  -- 

1378
00:58:51,396 --> 00:58:53,231
PROPOSAL TO DETERMINE WHETHER AN

1379
00:58:53,231 --> 00:58:55,801
INDIVIDUAL'S PAST WORK IS 

1380
00:58:55,801 --> 00:58:56,735
RELEVANT FOR MAKING DISABILITY 

1381
00:58:56,735 --> 00:59:01,740
DERM NAGE  -- DETERMINATIONS 

1382
00:59:01,740 --> 00:59:03,709
FROM 15 YEARS TO FIVE YEARS.

1383
00:59:03,709 --> 00:59:06,378
TO MAKE SURE YOUR COMMENTS ARE 

1384
00:59:06,378 --> 00:59:08,480
CONSIDERED WE MUST RECEIVE THEM 

1385
00:59:08,480 --> 00:59:12,784
BY NOVEMBER 28 AND THE YOUTH 

1386
00:59:12,784 --> 00:59:18,090
TRANSITIONING TO ADULTHOOD AND 

1387
00:59:18,090 --> 00:59:21,226
PREPARING FOR AN 18 

1388
00:59:21,226 --> 00:59:23,862
DETERMINATION WILL BE NEXT 1:00 

1389
00:59:23,862 --> 00:59:26,264
TO 3:00 EASTERN BY MICROSOFT 

1390
00:59:26,264 --> 00:59:29,768
TEAMS REGISTER BY NEXT 

1391
00:59:29,768 --> 00:59:34,773
WEDNESDAY, OCTOBER 16.

1392
00:59:34,773 --> 00:59:44,950
>> MITCH.

1393
00:59:49,354 --> 00:59:50,689
>> IT'S HARD TO HEAR YOU.

1394
00:59:50,689 --> 00:59:56,495
>> WE MENTIONED THE 

1395
00:59:56,495 --> 00:59:59,598
INTERDEPARTMENTAL HEALTH 

1396
00:59:59,598 --> 01:00:08,473
COMMITTEE AND THE COORDINATING 

1397
01:00:08,473 --> 01:00:12,511
COMMITTEE AND I PUT THAT LINK 

1398
01:00:12,511 --> 01:00:22,587
IN.

1399
01:00:27,793 --> 01:00:28,693
>> THANK YOU.

1400
01:00:28,693 --> 01:00:31,396
I WORK IN THE OFFICE OF SPECIAL 

1401
01:00:31,396 --> 01:00:33,298
EDUCATION PROGRAMS DEPARTMENT OF

1402
01:00:33,298 --> 01:00:34,800
EDUCATION AND HAVE THE 

1403
01:00:34,800 --> 01:00:36,501
DISCRETIONARY GRANTS ON THE 

1404
01:00:36,501 --> 01:00:38,770
INDIVIDUALS WITH DISABILITIES, 

1405
01:00:38,770 --> 01:00:42,607
EDUCATION ACT AS WELL AS ALL THE

1406
01:00:42,607 --> 01:00:46,711
DATA FOR THE UP TO $7 MILLION 

1407
01:00:46,711 --> 01:00:47,412
CHILDREN WITH DISABILITIES BIRTH

1408
01:00:47,412 --> 01:00:48,480
TO 21.

1409
01:00:48,480 --> 01:00:56,054
I WANTED TO UPDATE YOU WE JUST 

1410
01:00:56,054 --> 01:00:57,856
MADE $35 MILLION IN PERSONAL 

1411
01:00:57,856 --> 01:00:58,990
PREPARATION GRANTS TOWARDS THE 

1412
01:00:58,990 --> 01:01:02,027
END OF THE PHYSICAL YEAR ON ANY 

1413
01:01:02,027 --> 01:01:03,695
GIVEN DAY OUR FUNDS SUPPORT 

1414
01:01:03,695 --> 01:01:05,363
ABOUT 6,000 SCHOLARS.

1415
01:01:05,363 --> 01:01:09,067
WE SPEND ABOUT $100 MILLION AN 

1416
01:01:09,067 --> 01:01:16,575
ON PERSONNEL PREPARATION.

1417
01:01:16,575 --> 01:01:22,514
THESE WERE FOR MASTER AND 

1418
01:01:22,514 --> 01:01:23,882
BACHELOR GRANTS AND TO THE 

1419
01:01:23,882 --> 01:01:26,751
PRODUCTION OF RELATED SERVICES 

1420
01:01:26,751 --> 01:01:30,422
PERSONNEL, OTPT SPEECH, SCHOOL 

1421
01:01:30,422 --> 01:01:33,825
PSYCHOLOGIST, COUNSELORS, SOCIAL

1422
01:01:33,825 --> 01:01:34,392
WORKERS.

1423
01:01:34,392 --> 01:01:37,963
WE HAD A SEPARATE PROGRAM FOR 

1424
01:01:37,963 --> 01:01:38,763
MINORITY INSTITUTIONS THAT 

1425
01:01:38,763 --> 01:01:42,868
FOCUSSED ON HBCUs, MINORITY 

1426
01:01:42,868 --> 01:01:43,502
SERVING INSTITUTIONS AND TRIBAL 

1427
01:01:43,502 --> 01:01:50,208
COLLEGES AND UNIVERSITIES.

1428
01:01:50,208 --> 01:01:52,477
WE ALSO MADE A LARGE GROUP OF 

1429
01:01:52,477 --> 01:01:53,945
DOCTORAL TRAINING GRANTS.

1430
01:01:53,945 --> 01:01:56,748
OUR FUNDS SUPPORT 40% TO 50% OF 

1431
01:01:56,748 --> 01:02:02,521
THOSE AWARDED EVERY YEAR.

1432
01:02:02,521 --> 01:02:03,855
MY MESSAGE IS THERE'S A LOT OF 

1433
01:02:03,855 --> 01:02:07,259
FREE MONEY OUT THERE RIGHT NOW 

1434
01:02:07,259 --> 01:02:10,195
FOR SCHOLARS AND IF YOU HAVE 

1435
01:02:10,195 --> 01:02:14,232
FAMILY, FRIENDS OR COLLEAGUES 

1436
01:02:14,232 --> 01:02:15,333
LOOKING TOWARDS DEGREES IN THE 

1437
01:02:15,333 --> 01:02:19,137
DISABILITY FIELD IT'S USUALLY 

1438
01:02:19,137 --> 01:02:23,108
VERY HIGHLY SUPPORTED WITH 

1439
01:02:23,108 --> 01:02:24,109
FEDERAL FUNDS AND A CAN TELL YOU

1440
01:02:24,109 --> 01:02:25,977
THEY'RE THE FINEST PROGRAMS IN 

1441
01:02:25,977 --> 01:02:26,344
THE COUNTRY.

1442
01:02:26,344 --> 01:02:28,880
THANK YOU AND YOU CAN CONTACT ME

1443
01:02:28,880 --> 01:02:39,424
AT LARRY.WEXLER@ED.gov AND HOOK 

1444
01:02:41,793 --> 01:02:45,964
YOU UP WITH WHOEVER YOU NEED.

1445
01:02:45,964 --> 01:02:47,866
>> STEWART SHAPIRO FROM
THE CDC.

1446
01:02:47,866 --> 01:02:50,769
I HAVE A BRIEF PUBLIC SERVICE 

1447
01:02:50,769 --> 01:02:51,536
ANNOUNCEMENT FROM THE CDC.

1448
01:02:51,536 --> 01:02:53,772
EVERYONE IS LIKELY AWARE THAT WE

1449
01:02:53,772 --> 01:02:57,842
ARE COMING UP ON RESPIRATORY 

1450
01:02:57,842 --> 01:03:00,612
VIRUS SEASON WHICH WILL INCLUDE 

1451
01:03:00,612 --> 01:03:06,484
FLU AND COVID AND RSV WITHOUT A 

1452
01:03:06,484 --> 01:03:07,252
DOUBT.

1453
01:03:07,252 --> 01:03:09,454
ALL THESE CAN CAUSE SERIOUS 

1454
01:03:09,454 --> 01:03:10,121
INFECTIONS PARTICULARLY IN THE 

1455
01:03:10,121 --> 01:03:15,427
VERY YOUNG AND ELDERLY AND 

1456
01:03:15,427 --> 01:03:16,428
PEOPLE WITH CHRONIC HEALTH 

1457
01:03:16,428 --> 01:03:18,363
CONDITIONS AND PEOPLE WITH 

1458
01:03:18,363 --> 01:03:18,697
DISABILITIES.

1459
01:03:18,697 --> 01:03:19,965
VACCINATION IS THE BEST 

1460
01:03:19,965 --> 01:03:20,999
PROTECTION FROM THESE ILLNESSES.

1461
01:03:20,999 --> 01:03:25,503
ALL ARE ENCOURAGED BY THE CDC TO

1462
01:03:25,503 --> 01:03:27,906
GET VACCINATED IN ORDER TO 

1463
01:03:27,906 --> 01:03:30,709
PROTECT ONE'S SELF AND ONE 

1464
01:03:30,709 --> 01:03:32,811
FAMILY FROM VACCINE PREVENTIBLE 

1465
01:03:32,811 --> 01:03:36,514
SERIOUS INFECTION BY THESE 

1466
01:03:36,514 --> 01:03:36,748
VIRUSES.

1467
01:03:36,748 --> 01:03:46,925
THANK YOU.

1468
01:03:54,532 --> 01:03:57,836
THERE'S AN INITIATIVE STARTED AT

1469
01:03:57,836 --> 01:03:59,137
NSAR AND HAVE A SPECIAL INTEREST

1470
01:03:59,137 --> 01:04:02,107
GROUP AND GROUP OF SCIENTISTS 

1471
01:04:02,107 --> 01:04:04,276
AND STAKEHOLDERS AND ADVOCATES 

1472
01:04:04,276 --> 01:04:05,644
AROUND SEVERE INTENSE AND 

1473
01:04:05,644 --> 01:04:07,912
DANGEROUS BEHAVIORS.

1474
01:04:07,912 --> 01:04:10,815
THESE ARE BEHAVIORS FROM THINGS 

1475
01:04:10,815 --> 01:04:13,652
LIKE AGGRESSION TO SELF-INJURY 

1476
01:04:13,652 --> 01:04:21,493
AND UNDER THE RUBRIC OF THESE 

1477
01:04:21,493 --> 01:04:21,760
BEHAVIORS.

1478
01:04:21,760 --> 01:04:26,131
IF ANYONE IS INTERESTED YOU CAN 

1479
01:04:26,131 --> 01:04:29,267
E-MAIL ME ON THE IACC WEB PAGE 

1480
01:04:29,267 --> 01:04:30,969
AND I DON'T KNOW HOW MANY PEOPLE

1481
01:04:30,969 --> 01:04:33,071
KNOW WE'RE PARTNERING WITH THE 

1482
01:04:33,071 --> 01:04:36,041
Ls FOR AUTISM FOUNDATION FOR AN 

1483
01:04:36,041 --> 01:04:37,609
INITIATIVE SPECIFICALLY FOR 

1484
01:04:37,609 --> 01:04:41,246
SIBLINGS.

1485
01:04:41,246 --> 01:04:42,180
SIBLINGS ARE SOMETIMES THE 

1486
01:04:42,180 --> 01:04:43,982
UNSUNG HEROES OF THE AUTISM 

1487
01:04:43,982 --> 01:04:46,451
COMMUNITY AND ALL FEEL OR MOST 

1488
01:04:46,451 --> 01:04:48,086
OF THEM I FOUND FEEL ARE KIND OF

1489
01:04:48,086 --> 01:04:49,654
ISOLATED AND ALONE.

1490
01:04:49,654 --> 01:04:53,291
SO WE'VE CREATED SOMETHING A 

1491
01:04:53,291 --> 01:04:53,958
LITTLE BIT DIFFERENT THAN SHOPS 

1492
01:04:53,958 --> 01:04:57,862
BUT IT'S MORE OF AN ONLINE 

1493
01:04:57,862 --> 01:04:58,963
NETWORKING AND WE HAVE 

1494
01:04:58,963 --> 01:05:00,498
SCIENTIFIC SPEAKERS THAT TALK 

1495
01:05:00,498 --> 01:05:02,801
ABOUT RESEARCH AND ARE INFORMED 

1496
01:05:02,801 --> 01:05:05,003
BY WHAT SIBLINGS THINK SHOULD BE

1497
01:05:05,003 --> 01:05:05,837
RESEARCH SO.

1498
01:05:05,837 --> 01:05:09,708
AND BEFORE I FORGET WE HAVE PRE 

1499
01:05:09,708 --> 01:05:12,110
AND POST-DOCTORAL FELLOWSHIPS 

1500
01:05:12,110 --> 01:05:12,844
DUE IN EARLY SEPTEMBER.

1501
01:05:12,844 --> 01:05:14,813
PLEASE LOOK ON OUR WEBSITE AND 

1502
01:05:14,813 --> 01:05:15,146
APPLY.

1503
01:05:15,146 --> 01:05:16,481
>> THANK YOU VERY MUCH.

1504
01:05:16,481 --> 01:05:19,684
WE ARE RIGHT ON TIME.

1505
01:05:19,684 --> 01:05:25,924
>> JALEN, I'LL ASK YOU TO
BE 

1506
01:05:25,924 --> 01:05:26,324
BRIEF.

1507
01:05:26,324 --> 01:05:36,735
>> JENNIFER AND JAYHLI.

1508
01:05:38,203 --> 01:05:38,503
 

1509
01:05:38,503 --> 01:05:40,972
>> I WANT TO MENTION TO
STEWART 

1510
01:05:40,972 --> 01:05:43,074
I'VE LIVED WITH THE DEVELOPER ON

1511
01:05:43,074 --> 01:05:45,577
VACCINES FOR CHILDREN AND THE 

1512
01:05:45,577 --> 01:05:50,849
TREATMENT FOR RSV FOR OVER 40 

1513
01:05:50,849 --> 01:05:51,483
YEARS.

1514
01:05:51,483 --> 01:05:52,851
YES, IT'S SERIOUS AND YOUR 

1515
01:05:52,851 --> 01:05:53,818
ANNOUNCEMENT WAS VERY IMPORTANT.

1516
01:05:53,818 --> 01:05:56,855
WE'RE CURRENTLY WORK ON A PILOT 

1517
01:05:56,855 --> 01:05:59,691
PROGRAM WHICH IS YIELDING SOME 

1518
01:05:59,691 --> 01:06:02,227
VERY INTERESTING RESULTS.

1519
01:06:02,227 --> 01:06:04,496
WE HAVE PUBLICATIONS ON OUR 

1520
01:06:04,496 --> 01:06:07,232
FIRST FINDINGS, KNOWING WE NEED 

1521
01:06:07,232 --> 01:06:09,534
TO GO BROADER AND DEEPER.

1522
01:06:09,534 --> 01:06:16,474
WE HAVE HOUSING REPORT OUT OF 

1523
01:06:16,474 --> 01:06:17,575
SALT LAKE WHICH SHOULD TRANSLATE

1524
01:06:17,575 --> 01:06:22,247
TO MUNICIPALITIES OF SIMILAR 

1525
01:06:22,247 --> 01:06:22,614
POPULATIONS.

1526
01:06:22,614 --> 01:06:24,949
BUT THE RESEARCH THAT WE ARE 

1527
01:06:24,949 --> 01:06:26,551
DOING COLLECTING DATA BECAUSE 

1528
01:06:26,551 --> 01:06:28,486
THERE'S SO LITTLE ON ADULTS 

1529
01:06:28,486 --> 01:06:31,389
WE'RE TRYING TO GET INFORMATION 

1530
01:06:31,389 --> 01:06:33,992
THAT WE CAN EMPOWER LEGISLATORS,

1531
01:06:33,992 --> 01:06:37,862
LAWMAKERS ON ALL LEVELS ABOUT 

1532
01:06:37,862 --> 01:06:39,564
ACTS ON ADULTS WITH AUTISM AND 

1533
01:06:39,564 --> 01:06:40,265
THE EXPERIENCE THEIR FAMILIES 

1534
01:06:40,265 --> 01:06:44,469
ARE HAVING AND WHERE THE NEEDS 

1535
01:06:44,469 --> 01:06:46,604
ARE RATHER THAN SITTING AROUND 

1536
01:06:46,604 --> 01:06:48,273
THE TABLE GUESSING AND WHAT 

1537
01:06:48,273 --> 01:06:49,140
THOSE MAY BE.

1538
01:06:49,140 --> 01:06:50,175
IT'S BEEN A VERY INTERESTING 

1539
01:06:50,175 --> 01:06:51,810
THING AND WE'RE GOING TO BE 

1540
01:06:51,810 --> 01:06:53,878
MAKING ALL OF THESE THINGS 

1541
01:06:53,878 --> 01:06:57,715
AVAILABLE TO THE NATION AND IF 

1542
01:06:57,715 --> 01:06:58,316
THERE ARE MUNICIPALITIES OR 

1543
01:06:58,316 --> 01:07:01,886
STATES THAT WANT TO DO THINGS 

1544
01:07:01,886 --> 01:07:04,923
WE'RE FINDING GREAT EMPOWERMENT.

1545
01:07:04,923 --> 01:07:06,291
THE GOVERNOR IS ENDORSING 

1546
01:07:06,291 --> 01:07:08,493
EVERYTHING WE ARE DOING AND 

1547
01:07:08,493 --> 01:07:13,898
FINDING GREAT POWER IN EDUCATING

1548
01:07:13,898 --> 01:07:15,300
THOUGHT LEADERS INCLUDING 

1549
01:07:15,300 --> 01:07:17,068
LEGISLATORS ON THE STATE AND 

1550
01:07:17,068 --> 01:07:23,341
NATIONAL LEVEL AND LOCALLY WITH 

1551
01:07:23,341 --> 01:07:26,744
MAYORS AND COUNTY COUNCIL AND 

1552
01:07:26,744 --> 01:07:29,647
EDUCATING PARENTS ON WHAT THEY 

1553
01:07:29,647 --> 01:07:30,849
CAN USE IN THEIR COMMUNITIES AND

1554
01:07:30,849 --> 01:07:31,516
MAKING SURE THEY'RE TALKING TO 

1555
01:07:31,516 --> 01:07:36,688
ONE ANOTHER.

1556
01:07:36,688 --> 01:07:37,889
THERE'S HEAVY INFORMATION ALONG 

1557
01:07:37,889 --> 01:07:38,590
THE WAY.

1558
01:07:38,590 --> 01:07:42,460
IT'S LOOKING AT THE ISSUES OF 

1559
01:07:42,460 --> 01:07:50,368
ADULTS WITH AUTISM AND OTHER 

1560
01:07:50,368 --> 01:07:51,436
NEURODIVERSITIES WE'RE WORKING 

1561
01:07:51,436 --> 01:07:53,705
HARD WITH HOUSING BECAUSE THE 

1562
01:07:53,705 --> 01:07:56,241
RATE OF HOMELESSNESS IS 

1563
01:07:56,241 --> 01:08:00,678
ESTIMATED TO BE 20% AND MORE IF 

1564
01:08:00,678 --> 01:08:05,450
YOU INCLUDE NEURODIVERSITIES AND

1565
01:08:05,450 --> 01:08:06,818
TRYING TO WORK ON THE CURRENT 

1566
01:08:06,818 --> 01:08:08,853
SITUATION AND TRYING TO PREVENT 

1567
01:08:08,853 --> 01:08:11,890
HOMELESSNESS IN THE FUTURE.

1568
01:08:11,890 --> 01:08:13,424
IT'S GOING TO TAKE INTO 

1569
01:08:13,424 --> 01:08:14,459
CONSIDERATION MANY THINGS AND 

1570
01:08:14,459 --> 01:08:16,494
THE EXPERTISE OF MANY OF YOU 

1571
01:08:16,494 --> 01:08:18,563
AROUND THE TABLE.

1572
01:08:18,563 --> 01:08:20,398
AND ID WOULD LIKE TO TALK TO 

1573
01:08:20,398 --> 01:08:21,933
ANYONE INTERESTED IN THIS AND 

1574
01:08:21,933 --> 01:08:25,904
WE'RE WORKING WITH URBAN, 

1575
01:08:25,904 --> 01:08:28,373
SUBURBAN AND RURAL AND NATIVE 

1576
01:08:28,373 --> 01:08:30,041
COMMUNITIES TOGETHER TO GATHER 

1577
01:08:30,041 --> 01:08:31,009
DATA.

1578
01:08:31,009 --> 01:08:32,443
>> JENNIFER.

1579
01:08:32,443 --> 01:08:34,646
>> A FEW UPDATES FROM THE 

1580
01:08:34,646 --> 01:08:35,547
ADMINISTRATION FOR COMMUNITY 

1581
01:08:35,547 --> 01:08:37,782
LIVING AND TO STEWARD'S POINT 

1582
01:08:37,782 --> 01:08:41,085
ABOUT VACCINATIONS OUR GRANTEES 

1583
01:08:41,085 --> 01:08:42,587
CONTINUE WORK TO ASSIST PEOPLE 

1584
01:08:42,587 --> 01:08:44,856
IN GETTING VACCINATED NOT ONLY 

1585
01:08:44,856 --> 01:08:47,458
FOR COVID BUT OTHER VIRUSES THAT

1586
01:08:47,458 --> 01:08:50,328
OFTEN HAPPEN IF THE FALL.

1587
01:08:50,328 --> 01:08:53,298
AS PART OF THAT EFFORT WE 

1588
01:08:53,298 --> 01:08:55,133
RECENTLY LAUNCHED ENHANCE 

1589
01:08:55,133 --> 01:08:56,501
WEBSITE FOR THE DISABILITY 

1590
01:08:56,501 --> 01:08:58,069
INFORMATION AND ACCESS LINE 

1591
01:08:58,069 --> 01:09:01,339
WHERE ANY MEMBER OF THE PUBLIC 

1592
01:09:01,339 --> 01:09:04,509
CAN GO ON THE SITE TO SEARCH FOR

1593
01:09:04,509 --> 01:09:07,345
THEIR STATE OR LOCAL ACL ZABL 

1594
01:09:07,345 --> 01:09:07,779
PROGRAM.

1595
01:09:07,779 --> 01:09:12,083
THAT'S A NEW RESOURCE 

1596
01:09:12,083 --> 01:09:13,651
AVAILABLE -- AVAILABLE PROGRAM.

1597
01:09:13,651 --> 01:09:14,886
>> THE ADMINISTRATION ON 

1598
01:09:14,886 --> 01:09:17,121
DISABILITIES AND ACL AWARDED 

1599
01:09:17,121 --> 01:09:18,456
SEVERAL PROJECTS AT THE END OF 

1600
01:09:18,456 --> 01:09:22,894
SEPTEMBER I WANTED TO HIGHLIGHT.

1601
01:09:22,894 --> 01:09:24,495
ONE LARGE PROJECT WE'RE GET 

1602
01:09:24,495 --> 01:09:27,932
STARTED ON IS THE NATIONAL 

1603
01:09:27,932 --> 01:09:28,633
CENTER FOR DISABILITY GRASSROOTS

1604
01:09:28,633 --> 01:09:33,972
ADVOCACY AND THE PROJECT IS 

1605
01:09:33,972 --> 01:09:35,607
DESIGN TO GET INFORMATION ANDS 

1606
01:09:35,607 --> 01:09:37,575
INTO THE HANDS OF PEOPLE WITH 

1607
01:09:37,575 --> 01:09:38,509
DISABILITIES TO THEY'RE BETTER 

1608
01:09:38,509 --> 01:09:39,143
INFORMED TO BETTER ADVOCACY FOR 

1609
01:09:39,143 --> 01:09:43,581
THEMSELVES.

1610
01:09:43,581 --> 01:09:46,884
 WE'LL HAVE SPECIFIC AREAS OF 

1611
01:09:46,884 --> 01:09:53,925
FOCUS ON THE STUDY AND ISSUES 

1612
01:09:53,925 --> 01:09:55,059
RELATED TO HOUSING BUT ALSO 

1613
01:09:55,059 --> 01:09:55,927
OTHER AREAS OF ADVOCACY IN TERMS

1614
01:09:55,927 --> 01:09:56,828
OF HEALTH AND SAFETY IN THE 

1615
01:09:56,828 --> 01:09:59,897
COMMUNITY.

1616
01:09:59,897 --> 01:10:03,835
AS WELL AS THE DIRECT CARE 

1617
01:10:03,835 --> 01:10:04,102
WORKFORCE.

1618
01:10:04,102 --> 01:10:05,403
WE'LL ALSO DESIGN THEM IN A WAY 

1619
01:10:05,403 --> 01:10:07,839
TO CONNECT THE GRASSROOTS 

1620
01:10:07,839 --> 01:10:09,841
ADVOCATE TO STATE ENTITIES AS 

1621
01:10:09,841 --> 01:10:12,143
WELL AS NATIONAL ENTITIES AS 

1622
01:10:12,143 --> 01:10:13,111
WELL AS OTHER GRASS ROOT 

1623
01:10:13,111 --> 01:10:14,579
ADVOCATES AT THE LOCAL LEVEL.

1624
01:10:14,579 --> 01:10:19,117
WE ALSO AWARDED A PROJECT THAT 

1625
01:10:19,117 --> 01:10:20,885
WILL BE LOOKING AT PEER-TO-PEER 

1626
01:10:20,885 --> 01:10:23,655
SUPPORT MODELS FOR AUGMENTATIVE 

1627
01:10:23,655 --> 01:10:24,489
COMMUNICATION TO INCREASE THE 

1628
01:10:24,489 --> 01:10:27,358
USE OF AUGMENT AND ALTERNATIVE 

1629
01:10:27,358 --> 01:10:30,595
COMMUNICATION FOR THOSE WHO 

1630
01:10:30,595 --> 01:10:33,464
POTENTIAL USERS BUT MAY NOT BE 

1631
01:10:33,464 --> 01:10:34,165
USING IT BECAUSE THERE'S OTHER 

1632
01:10:34,165 --> 01:10:35,466
GATE KEEPERS PREVENTING THEM 

1633
01:10:35,466 --> 01:10:40,071
FROM USING IT OR DON'T HAVE 

1634
01:10:40,071 --> 01:10:41,706
ENOUGH EXPOSURE AND WORKING WITH

1635
01:10:41,706 --> 01:10:43,808
PEERS MAY HELP WITH THE ADOPTION

1636
01:10:43,808 --> 01:10:46,244
OF USING AAC.

1637
01:10:46,244 --> 01:10:50,281
AND LASTLY WE AWARDED CONTRACT 

1638
01:10:50,281 --> 01:10:52,850
TO PROVIDE BOTH LOGISTICAL AND 

1639
01:10:52,850 --> 01:10:56,487
PLANNING SPORT FOR OUR IDD 

1640
01:10:56,487 --> 01:10:59,057
INITIATIVE TO GET BETTER HEALTH 

1641
01:10:59,057 --> 01:10:59,757
SURVEILLANCE AND PREVALENCE ON 

1642
01:10:59,757 --> 01:11:00,758
THE POPULATION.

1643
01:11:00,758 --> 01:11:02,460
THERE'S AN ELEMENT WE'RE FUNDING

1644
01:11:02,460 --> 01:11:05,396
WITH OUR PARTNERS WITH CDC TO 

1645
01:11:05,396 --> 01:11:07,031
LOOK AT ESTABLISHING A CENTER 

1646
01:11:07,031 --> 01:11:07,732
FOR EXCELLENCE ON DATA ON THE 

1647
01:11:07,732 --> 01:11:11,869
IDD POPULATION.

1648
01:11:11,869 --> 01:11:13,137
GLAD WE'RE ABLE TO CONTINUE THAT

1649
01:11:13,137 --> 01:11:14,439
WORK WITH ADDITIONAL SUPPORT.

1650
01:11:14,439 --> 01:11:15,239
>> THANK YOU VERY MUCH.

1651
01:11:15,239 --> 01:11:18,576
WE'RE GOING TO NOW TAKE A BREAK.

1652
01:11:18,576 --> 01:11:20,845
 YES, AND I ALSO JUST
WANT TO 

1653
01:11:20,845 --> 01:11:23,981
POINT OUT THAT WE HAVE A WRITTEN

1654
01:11:23,981 --> 01:11:26,084
DOCUMENT WITH ROUND ROBIN 

1655
01:11:26,084 --> 01:11:29,153
UPDATES SUBMITTED BY MEMBERS SO 

1656
01:11:29,153 --> 01:11:30,354
FOR ANYONE WATCHING ONLINE OR 

1657
01:11:30,354 --> 01:11:32,390
WAS HERE AT THE TABLE YOU CAN 

1658
01:11:32,390 --> 01:11:35,193
READ THROUGH THOSE UPDATES AND 

1659
01:11:35,193 --> 01:11:36,527
WE'VE PROVIDED LINKS AND AFTER 

1660
01:11:36,527 --> 01:11:39,063
THE MEETING WE OFTEN UPDATE THE 

1661
01:11:39,063 --> 01:11:39,931
DOCUMENT BASED ON WHAT WAS 

1662
01:11:39,931 --> 01:11:40,531
SHARED AT THE TABLE TOO.

1663
01:11:40,531 --> 01:11:41,999
GO BACK TO THAT AS A RESOURCE 

1664
01:11:41,999 --> 01:11:43,401
AND IF THERE'S SOMETHING YOU 

1665
01:11:43,401 --> 01:11:45,069
HEARD HERE AND DIDN'T CATCH IT, 

1666
01:11:45,069 --> 01:11:46,204
YOU CAN ALWAYS WRITE TO OUR 

1667
01:11:46,204 --> 01:11:48,473
OFFICE AS WELL TO GET THE 

1668
01:11:48,473 --> 01:11:48,773
INFORMATION.

1669
01:11:48,773 --> 01:11:54,314
YES, WE'LL GO ON BREAK. THANK
YOU.

1670
01:11:54,314 --> 01:11:54,715
OKAY.

1671
01:11:54,715 --> 01:11:59,353
READY TO GET STARTED WITH IACC 

1672
01:11:59,353 --> 01:12:07,628
COMMITTEE BUSINESS.

1673
01:12:07,628 --> 01:12:09,930
SO AN OVERVIEW OF WHAT WE'RE 

1674
01:12:09,930 --> 01:12:12,532
GOING TO BE TALKING ABOUT TODAY 

1675
01:12:12,532 --> 01:12:14,701
ARE THE IACC'S STRATEGIC PLAN.

1676
01:12:14,701 --> 01:12:16,937
THE SUMMARY OF ADVANCES AND 

1677
01:12:16,937 --> 01:12:22,776
PLANNING FOR FUTURE PROJECTS.

1678
01:12:22,776 --> 01:12:25,112
FIRST I'M VERY HAPPY TO ANNOUNCE

1679
01:12:25,112 --> 01:12:28,949
THAT THE NEW 2021 TO 2023 IACC 

1680
01:12:28,949 --> 01:12:30,684
STRATEGIC PLAN HAS BEEN RELEASED

1681
01:12:30,684 --> 01:12:32,352
AND YOU MAY HAVE RECEIVED THE 

1682
01:12:32,352 --> 01:12:35,255
E-MAIL OR SEEN ANNOUNCEMENTS ON 

1683
01:12:35,255 --> 01:12:38,091
SOCIAL MEDIA BUT THIS WAS JUST 

1684
01:12:38,091 --> 01:12:40,627
RELEASED RECENTLY AND AS A 

1685
01:12:40,627 --> 01:12:42,663
REMINDER JUST OF THE PAST ACTIVE

1686
01:12:42,663 --> 01:12:45,132
THE IACC VOTED TO APPROVE THE 

1687
01:12:45,132 --> 01:12:47,801
IACC STRATEGIC PLAN IN JANUARY 

1688
01:12:47,801 --> 01:12:48,936
AT THE FULL COMMITTEE MEETING 

1689
01:12:48,936 --> 01:12:51,371
THAT TOOK PLACE AT THAT TIME AND

1690
01:12:51,371 --> 01:12:52,773
NOW THE IACC STRATEGIC PLAN IS 

1691
01:12:52,773 --> 01:12:55,409
POSTED ON OUR WEBSITE WITH AN 

1692
01:12:55,409 --> 01:12:56,743
EASY READ VERSION.

1693
01:12:56,743 --> 01:12:58,312
THE REGULAR STRATEGY PLAN IS 

1694
01:12:58,312 --> 01:13:00,981
OVER 200 PAGES AND THE EASY READ

1695
01:13:00,981 --> 01:13:03,951
IS 16 PAGES SO IT'S CONDENSED 

1696
01:13:03,951 --> 01:13:04,284
SUBSTANTIALLY.

1697
01:13:04,284 --> 01:13:05,852
AND THESE ARE ON OUR WEBSITE.

1698
01:13:05,852 --> 01:13:09,690
YOU CAN ACCESS THEM IN PDF.

1699
01:13:09,690 --> 01:13:11,224
AND THE PLAN CONTAINS 24 

1700
01:13:11,224 --> 01:13:12,893
RECOMMENDATIONS FOR ACTIVITIES 

1701
01:13:12,893 --> 01:13:16,296
TO IMPROVE THE HEALTH, WELL 

1702
01:13:16,296 --> 01:13:18,432
BEING AND OUTCOMES FOR AUTISTIC 

1703
01:13:18,432 --> 01:13:19,166
PEOPLE WITH DIVERSE NEEDS ACROSS

1704
01:13:19,166 --> 01:13:20,067
ALL COMMUNITIES.

1705
01:13:20,067 --> 01:13:22,536
IT'S THE MOST COMPREHENSIVE 

1706
01:13:22,536 --> 01:13:24,571
STRATEGIC PLAN TO DATE SO 

1707
01:13:24,571 --> 01:13:25,472
CONGRATULATIONS TO THE COMMITTEE

1708
01:13:25,472 --> 01:13:27,774
FOR ENSURING THAT WE COVERED NEW

1709
01:13:27,774 --> 01:13:31,712
AREAS THAT HAD NOT BEEN COVERED 

1710
01:13:31,712 --> 01:13:32,946
IN PREVIOUS STRATEGY PLANS AND 

1711
01:13:32,946 --> 01:13:34,514
WE OF COURSE APPRECIATE THE NEW 

1712
01:13:34,514 --> 01:13:35,615
DEPARTMENTS THAT HAVE JOINED OUR

1713
01:13:35,615 --> 01:13:39,920
COMMITTEES SINCE WE STARTED IN 

1714
01:13:39,920 --> 01:13:44,257
2021 WITH ADDITIONAL DETAILS OF 

1715
01:13:44,257 --> 01:13:46,093
AREAS WE NEED TO COVER.

1716
01:13:46,093 --> 01:13:48,061
WE'RE EXCITED TO HAVE THE PLAN 

1717
01:13:48,061 --> 01:13:49,096
RELEASED TO THE PUBLIC.

1718
01:13:49,096 --> 01:13:52,599
I'LL BE CONTINUING TO DO 

1719
01:13:52,599 --> 01:13:53,266
PRESENTATIONS ACROSS THE 

1720
01:13:53,266 --> 01:13:54,868
COMMUNITY ABOUT THE STRATEGIC 

1721
01:13:54,868 --> 01:13:58,372
PLAN TO HELP PEOPLE GET IN TOUCH

1722
01:13:58,372 --> 01:14:00,240
WITH IT AND WE WELCOME TO YOU 

1723
01:14:00,240 --> 01:14:01,274
SHARE THE INFORMATION AS WELL 

1724
01:14:01,274 --> 01:14:04,544
AND I KNOW I'VE PROVIDED SOCIAL 

1725
01:14:04,544 --> 01:14:05,379
MEDIA GRAPHICS TO THE COMMITTEE 

1726
01:14:05,379 --> 01:14:07,848
IF YOU'D LIKE TO SHARE IT OR IF 

1727
01:14:07,848 --> 01:14:09,282
YOU ARE GOING TO BE SPEAKING 

1728
01:14:09,282 --> 01:14:10,150
SOMEWHERE AND WANT TO MENTION 

1729
01:14:10,150 --> 01:14:12,919
THE STRATEGIC PLAN AND YOU NEED 

1730
01:14:12,919 --> 01:14:16,189
SOME SUPPORT FROM OUR OFFICE 

1731
01:14:16,189 --> 01:14:16,590
JUST LET US KNOW.

1732
01:14:16,590 --> 01:14:17,858
THANK YOU TO MEMBERS OF THE 

1733
01:14:17,858 --> 01:14:20,494
COMMITTEE AND PUBLIC WHO SHARED 

1734
01:14:20,494 --> 01:14:25,499
YOUR INPUT TO MAKE THIS 

1735
01:14:25,499 --> 01:14:26,566
STRATEGIC PLAN COVER THE DIVERSE

1736
01:14:26,566 --> 01:14:29,236
NEEDS OF THE COMMUNITY.

1737
01:14:29,236 --> 01:14:32,939
WE'RE EXCITED TO ANNOUNCE THAT 

1738
01:14:32,939 --> 01:14:34,908
IT'S OUT.

1739
01:14:34,908 --> 01:14:37,277
THIS IS FOR ANYBODY WHO MIGHT BE

1740
01:14:37,277 --> 01:14:40,947
READING THE SLIDE SET LATER JUST

1741
01:14:40,947 --> 01:14:42,215
MENTIONING THAT THE NEW STRATEGY

1742
01:14:42,215 --> 01:14:44,317
PLAN STILL COVERS THE SEVEN 

1743
01:14:44,317 --> 01:14:47,387
ORIGINAL AREAS THE OLD STRATEGY 

1744
01:14:47,387 --> 01:14:49,089
PLAN COVERED INCLUDING 

1745
01:14:49,089 --> 01:14:50,557
SCREENING, DIAGNOSIS, BIOLOGY 

1746
01:14:50,557 --> 01:14:51,958
AND GENETIC FACTORS, 

1747
01:14:51,958 --> 01:14:53,727
INTERVENTIONS, SERVICES AND 

1748
01:14:53,727 --> 01:14:56,663
SUPPORTS, LIFE SPAN ISSUES AND 

1749
01:14:56,663 --> 01:14:57,964
INFRASTRUCTURE AND PREVALENCE 

1750
01:14:57,964 --> 01:15:00,067
BUT ALSO ADDS EQUITY AND 

1751
01:15:00,067 --> 01:15:01,168
DESPAIRS AND EXPANDED SECTION ON

1752
01:15:01,168 --> 01:15:03,603
SEX AND GENDER AND A NEW SECTION

1753
01:15:03,603 --> 01:15:05,405
ON THE IMPACTS OF COVID-19 ON 

1754
01:15:05,405 --> 01:15:10,977
THE COMMUNITY.

1755
01:15:10,977 --> 01:15:12,913
THIS SLIDE JUST SHARDZ OF SHARES

1756
01:15:12,913 --> 01:15:14,981
SOME OF THE VERY IMPORTANT 

1757
01:15:14,981 --> 01:15:16,216
THEMES IN THE NEW STRATEGIC PLAN

1758
01:15:16,216 --> 01:15:18,285
INCLUDING GREATER ACCEPTANCE AND

1759
01:15:18,285 --> 01:15:19,986
INCLUSION OF AUTISTIC 

1760
01:15:19,986 --> 01:15:20,954
INDIVIDUALS ACROSS THE 

1761
01:15:20,954 --> 01:15:21,321
COMMUNITY.

1762
01:15:21,321 --> 01:15:23,390
INCREASED ACCESSIBILITY OF 

1763
01:15:23,390 --> 01:15:25,425
SERVICES AND RESEARCH FOR 

1764
01:15:25,425 --> 01:15:27,461
AUTISTIC INDIVIDUALS AND THEIR 

1765
01:15:27,461 --> 01:15:29,396
FAMILIES, SOLUTIONS FOR PEOPLE 

1766
01:15:29,396 --> 01:15:30,464
ACROSS THE ENTIRE SPECTRUM 

1767
01:15:30,464 --> 01:15:33,800
INCLUDING THOSE WITH THE HIGHEST

1768
01:15:33,800 --> 01:15:35,402
SUPPORT NEEDS, SOLUTIONS FOR 

1769
01:15:35,402 --> 01:15:36,937
PEOPLE ACROSS THE ENTIRE LIFE 

1770
01:15:36,937 --> 01:15:40,941
SPAN INCLUDING ADULTS AND OLDER 

1771
01:15:40,941 --> 01:15:41,374
ADULTS.

1772
01:15:41,374 --> 01:15:42,909
SOLUTIONS TO IMPROVE PHYSICAL 

1773
01:15:42,909 --> 01:15:47,948
AND MENTAL HEALTH FOR AUTISTIC 

1774
01:15:47,948 --> 01:15:48,748
INDIVIDUALS, INTERSECTION OF 

1775
01:15:48,748 --> 01:15:50,450
SOCIAL DETERMINATES OF HEALTH 

1776
01:15:50,450 --> 01:15:52,252
AND THE SERVICES SYSTEM AND THE 

1777
01:15:52,252 --> 01:15:55,956
GOAL TO INCREASE EQUITY AND 

1778
01:15:55,956 --> 01:15:57,958
REDUCE DISPARITIES AND SO THOSE 

1779
01:15:57,958 --> 01:16:06,800
ARE SOME OF THE MAIN THEMES.

1780
01:16:06,800 --> 01:16:09,903
THIS IS AN OVERVIEW OF THE EASY 

1781
01:16:09,903 --> 01:16:10,737
READ VERSION THAT'S AVAILABLE.

1782
01:16:10,737 --> 01:16:16,776
THANK YOU FOR YOUR WORK ON THIS.

1783
01:16:16,776 --> 01:16:19,246
>> SO THE NEXT ITEM I'M
GOING IT

1784
01:16:19,246 --> 01:16:20,680
TURN TO UNLESS THERE'S QUESTIONS

1785
01:16:20,680 --> 01:16:21,781
OR COMMENTS ABOUT THE STRATEGIC 

1786
01:16:21,781 --> 01:16:21,982
PLAN?

1787
01:16:21,982 --> 01:16:23,884
>> I'D LIKE TO MAKE ONE
COMMENT 

1788
01:16:23,884 --> 01:16:25,218
THAT I REALLY APPRECIATE THE 

1789
01:16:25,218 --> 01:16:28,922
INPUT FROM MEMBERS OF THIS 

1790
01:16:28,922 --> 01:16:32,292
COMMITTEE WHO INSISTED ON US 

1791
01:16:32,292 --> 01:16:33,393
DEVELOPING THAT EASY READ 

1792
01:16:33,393 --> 01:16:35,295
VERSION OF THE STRATEGIC PLAN.

1793
01:16:35,295 --> 01:16:37,864
I THINK THAT'S A MAJOR 

1794
01:16:37,864 --> 01:16:40,033
CONTRIBUTION YOU ALL HAVE MADE 

1795
01:16:40,033 --> 01:16:50,544
SO THAT MEMBERS REALLY AS FAR 

1796
01:16:50,844 --> 01:16:52,045
ACROSS THE SPECTRUM CAN SEE WHAT

1797
01:16:52,045 --> 01:16:56,016
WE'RE RECOMMENDING AND THE 

1798
01:16:56,016 --> 01:16:57,551
VARIOUS ORGANIZATIONS ARE DOING.

1799
01:16:57,551 --> 01:16:59,386
IT'S WONDERFUL TO BE HAVE THAT 

1800
01:16:59,386 --> 01:17:02,055
DOCUMENT.

1801
01:17:02,055 --> 01:17:03,723
YETTA YOU WANT TO MAKE A COMMENT

1802
01:17:03,723 --> 01:17:04,558
OR QUESTION.

1803
01:17:04,558 --> 01:17:06,092
>> NOT THIS VERSION
BECAUSE IT 

1804
01:17:06,092 --> 01:17:08,929
JUST CAME OUT OF THE EASY READ 

1805
01:17:08,929 --> 01:17:10,263
DOCUMENT BUT THE VERSION BEFORE 

1806
01:17:10,263 --> 01:17:12,232
WHEN WE WERE WORKING ON OUR 

1807
01:17:12,232 --> 01:17:15,936
PROJECT AND HAD BREAKOUT 

1808
01:17:15,936 --> 01:17:17,404
SESSIONS WE USED THE EASY READ 

1809
01:17:17,404 --> 01:17:21,308
DOCUMENT WITH THE FAMILIES AND 

1810
01:17:21,308 --> 01:17:23,476
SELF-ADVOCATES WHO WERE HAVING 

1811
01:17:23,476 --> 01:17:24,044
CONVERSATIONS.

1812
01:17:24,044 --> 01:17:26,079
IT IS BEING USED IN A LOT OF 

1813
01:17:26,079 --> 01:17:28,415
WAYS AND I'M SURE OTHER MEMBERS 

1814
01:17:28,415 --> 01:17:30,951
WILL SHARE OUT WITH YOU BUT I 

1815
01:17:30,951 --> 01:17:31,685
WANTED TO HIGHLIGHT THAT.

1816
01:17:31,685 --> 01:17:33,119
I FORGOT TO SHARE THAT EARLIER.

1817
01:17:33,119 --> 01:17:34,221
>> THANK YOU FOR SHARING
THAT 

1818
01:17:34,221 --> 01:17:34,588
WITH US.

1819
01:17:34,588 --> 01:17:36,923
WE ALSO REALLY WELCOME FEEDBACK 

1820
01:17:36,923 --> 01:17:37,791
ON THE EASY READ VERSION BECAUSE

1821
01:17:37,791 --> 01:17:40,026
THIS WAS OUR FIRST TIME DOING AN

1822
01:17:40,026 --> 01:17:42,996
EASY READ OF SUCH A BIG 

1823
01:17:42,996 --> 01:17:43,430
DOCUMENT.

1824
01:17:43,430 --> 01:17:44,931
WE'RE OPEN TO LEARNING WHAT WILL

1825
01:17:44,931 --> 01:17:46,600
BE MOST ACCESSIBLE FOR PEOPLE.

1826
01:17:46,600 --> 01:17:48,602
IF YOU'RE READING THE EASY READ 

1827
01:17:48,602 --> 01:17:49,803
AND HAVE COMMENTS OR FEEDBACK 

1828
01:17:49,803 --> 01:17:51,771
FOR US TO MAKE THE NEXT TIME WE 

1829
01:17:51,771 --> 01:17:58,712
DO IT BETTER, LET US KNOW.

1830
01:17:58,712 --> 01:18:00,447
>> DENA.

1831
01:18:00,447 --> 01:18:06,553
>> I WANT TO CONGRATULATE
YOUR 

1832
01:18:06,553 --> 01:18:08,121
CREW AND THE DOCUMENT AND I'M 

1833
01:18:08,121 --> 01:18:08,922
GRATEFUL YOU SEE THE VALUE OF 

1834
01:18:08,922 --> 01:18:17,297
IT.

1835
01:18:17,297 --> 01:18:19,933
WE ALSO USED EASY READ AND 

1836
01:18:19,933 --> 01:18:24,504
STARTED EMBEDDING SOMEONE'S FACE

1837
01:18:24,504 --> 01:18:25,805
IN THE PROCESS AND THEY TALK YOU

1838
01:18:25,805 --> 01:18:28,508
THROUGH WHAT'S IN THE EASY READ.

1839
01:18:28,508 --> 01:18:31,077
THEY BASICALLY READ IT TO YOU.

1840
01:18:31,077 --> 01:18:33,446
FOR MANY AUTISTIC PEOPLE OR 

1841
01:18:33,446 --> 01:18:35,382
OTHER LEARNING CHALLENGES, BEING

1842
01:18:35,382 --> 01:18:36,416
ABLE TO SEE SOMEONE'S LIPS AT 

1843
01:18:36,416 --> 01:18:38,752
THE SAME TIME AS YOU CAN SEE THE

1844
01:18:38,752 --> 01:18:41,655
PRINTED DOCUMENT IT'S SO 

1845
01:18:41,655 --> 01:18:42,489
HELPFUL.

1846
01:18:42,489 --> 01:18:44,291
IT'S BABY STEPS IN IMPROVEMENT 

1847
01:18:44,291 --> 01:18:46,493
BUT I'M HAPPY WITH WHAT WE'VE 

1848
01:18:46,493 --> 01:18:47,727
DONE BUT THAT'S ONE WEEK WE MAY 

1849
01:18:47,727 --> 01:18:50,330
BE ABLE TO DO TO MAKE IT MORE 

1850
01:18:50,330 --> 01:18:50,730
ACCESSIBLE.

1851
01:18:50,730 --> 01:18:51,631
>> THAT'S FANTASTIC.

1852
01:18:51,631 --> 01:18:53,733
I'D LOVE IT HEAR MORE ABOUT THAT

1853
01:18:53,733 --> 01:18:55,368
AND PERHAPS WE CAN PUT MEMBERS 

1854
01:18:55,368 --> 01:18:56,403
OF THE COMMITTEE TO WORK IF 

1855
01:18:56,403 --> 01:18:57,971
YOU'D LIKE TO EACH READ A 

1856
01:18:57,971 --> 01:19:00,040
CHAPTER IN SOME SORT OF VIDEO 

1857
01:19:00,040 --> 01:19:00,307
VERSION.

1858
01:19:00,307 --> 01:19:04,611
WE'RE OPEN TO WORKING ON THAT 

1859
01:19:04,611 --> 01:19:05,045
WITH YOU.

1860
01:19:05,045 --> 01:19:07,314
>> MY HAND IS UP.

1861
01:19:07,314 --> 01:19:08,081
>> EXCELLENT.

1862
01:19:08,081 --> 01:19:10,650
ANY OTHER COMMENTS ABOUT TE 

1863
01:19:10,650 --> 01:19:12,452
STRATEGIC PLAN?

1864
01:19:12,452 --> 01:19:14,621
IVA

1865
01:19:14,621 --> 01:19:14,854
IVANOVA.

1866
01:19:14,854 --> 01:19:16,923
>> I HAVE COMMENTS ONLINE.

1867
01:19:16,923 --> 01:19:20,660
SCOTT.

1868
01:19:20,660 --> 01:19:24,631
>> I WANTED TO SAY THANK
YOU FOR

1869
01:19:24,631 --> 01:19:26,199
THE EASY READ VERSION.

1870
01:19:26,199 --> 01:19:29,436
IT'S BEEN DONE INCREASINGLY IN 

1871
01:19:29,436 --> 01:19:31,271
RESEARCH IN A LOT OF A NUMBER OF

1872
01:19:31,271 --> 01:19:34,674
THE AUTISM JOURNALS HAVE 

1873
01:19:34,674 --> 01:19:36,109
ENCOURAGED SUMMARIES OR EASY 

1874
01:19:36,109 --> 01:19:37,143
READ VERSIONS OF TECHNICAL 

1875
01:19:37,143 --> 01:19:41,915
ARTICLES.

1876
01:19:41,915 --> 01:19:43,683
YOU SEE IT IN PRACTICES FOR 

1877
01:19:43,683 --> 01:19:44,584
SUPPORTS AND SERVICES.

1878
01:19:44,584 --> 01:19:45,952
I THINK IT'S IMPORTANT WE HAVE 

1879
01:19:45,952 --> 01:19:47,854
THAT FOR THE IACC STRATEGIC PLAN

1880
01:19:47,854 --> 01:19:52,792
AND I'LL BE SEEKING TO IF I CAN 

1881
01:19:52,792 --> 01:19:54,561
MAYBE BE A PART OF READING THE 

1882
01:19:54,561 --> 01:19:55,428
CHAPTERS OR WHATEVER OUT LOUD.

1883
01:19:55,428 --> 01:19:58,998
I THINK THAT WOULD BE HELPFUL 

1884
01:19:58,998 --> 01:19:59,699
FOR ACCESSIBILITY.

1885
01:19:59,699 --> 01:20:02,902
THANK YOU FOR THE STAFF AT NIH 

1886
01:20:02,902 --> 01:20:04,371
FOR PUTTING TOGETHER THAT EASY 

1887
01:20:04,371 --> 01:20:06,506
READ VERSION AND YOUR WORK ON 

1888
01:20:06,506 --> 01:20:07,040
SUPPORTING TOGETHER THE 

1889
01:20:07,040 --> 01:20:08,942
STRATEGIC PLAN.

1890
01:20:08,942 --> 01:20:14,314
IT'S WONDERFUL.

1891
01:20:14,314 --> 01:20:15,849
>> THANK YOU.

1892
01:20:15,849 --> 01:20:20,920
NEXT COMMENT FROM MORENIKE.

1893
01:20:20,920 --> 01:20:26,092
>> SHE SAID WE APPRECIATE
THE 

1894
01:20:26,092 --> 01:20:29,429
INCLUSION OF THE PRINT VERSION 

1895
01:20:29,429 --> 01:20:29,696
[NO AUDIO]

1896
01:20:29,696 --> 01:20:30,864
IT'S SOMEWHAT MORE HIGH LEVEL 

1897
01:20:30,864 --> 01:20:32,932
THAN IS IDEAL BUT MORE OF A LAY 

1898
01:20:32,932 --> 01:20:41,274
PERSON VERSION.

1899
01:20:41,274 --> 01:20:51,751
AND TREMENDOUS APPRECIATION.

1900
01:21:00,126 --> 01:21:02,695
>> WE CAN TAKE THE EASY
READ 

1901
01:21:02,695 --> 01:21:03,730
CONSIDERATION FOR THE NEXT 

1902
01:21:03,730 --> 01:21:06,299
PROJECT TO CONTINUE TO OPTIMIZE.

1903
01:21:06,299 --> 01:21:07,934
>> IVANOVA.

1904
01:21:07,934 --> 01:21:10,970
>> I JUST WANT TO THANK
THE 

1905
01:21:10,970 --> 01:21:12,772
COMMITTEE FOR THE EFFORTS ON 

1906
01:21:12,772 --> 01:21:16,109
MAKING THE MATERIALS MORE 

1907
01:21:16,109 --> 01:21:17,510
ACCESSIBLE FOR PEOPLE WITH 

1908
01:21:17,510 --> 01:21:20,947
INTELLECTUAL ZABLS.

1909
01:21:20,947 --> 01:21:24,184
-- DISABILITIES.

1910
01:21:24,184 --> 01:21:25,285
A LOT OF TIMES INTELLECTUAL 

1911
01:21:25,285 --> 01:21:26,319
DISABILITY IS NOT THOUGHT ABOUT 

1912
01:21:26,319 --> 01:21:30,723
IN THE CONVERSATION.

1913
01:21:30,723 --> 01:21:34,928
I'M EXCITED THAT AND RECOGNIZE 

1914
01:21:34,928 --> 01:21:42,569
THAT AND IT MAKES ME HAPPY AND 

1915
01:21:42,569 --> 01:21:43,470
REPRESENT THE COMMUNITY AND 

1916
01:21:43,470 --> 01:21:44,938
THERE'S AN EFFORT TO MAKE THINGS

1917
01:21:44,938 --> 01:21:48,141
MORE ACCESSIBLE.

1918
01:21:48,141 --> 01:21:54,514
I HOPE WE HAVE MORE 

1919
01:21:54,514 --> 01:21:56,950
ACCESSIBILITY IN THE FUTURE I'M 

1920
01:21:56,950 --> 01:22:06,626
EXCITED ABOUT THIS SO THANK YOU.

1921
01:22:06,626 --> 01:22:11,464
>> THERE'S THE STANDARD 

1922
01:22:11,464 --> 01:22:14,934
NEURODIVERSITY SUMMIT AND WE HAD

1923
01:22:14,934 --> 01:22:17,570
A NICE BREAKOUT SESSION AFTER MY

1924
01:22:17,570 --> 01:22:17,804
TALK.

1925
01:22:17,804 --> 01:22:20,473
WE HAD AN HOUR TO TALK ABOUT THE

1926
01:22:20,473 --> 01:22:24,444
PERSPECTIVES OF IACC MEMBERS AND

1927
01:22:24,444 --> 01:22:30,049
HAD NEURODIVERGENT MEMBERS OF 

1928
01:22:30,049 --> 01:22:36,923
OUR COMMITTEE AND THERE'S AN 

1929
01:22:36,923 --> 01:22:41,928
IMPACT ON THE COMMUNITY.

1930
01:22:41,928 --> 01:22:43,963
THAT WAS NICE.

1931
01:22:43,963 --> 01:22:47,267
AND WE'LL BE SHARING WORK ON THE

1932
01:22:47,267 --> 01:22:48,401
COMMITTEE AND GIVING COMMITTEE 

1933
01:22:48,401 --> 01:22:49,502
MEMBERS TO BE INVOLVED IN 

1934
01:22:49,502 --> 01:22:49,836
PRESENTATIONS.

1935
01:22:49,836 --> 01:22:52,939
THANK YOU TO YOU ALL FOR 

1936
01:22:52,939 --> 01:23:03,316
PARTICIPATING IN THAT.

1937
01:23:06,019 --> 01:23:07,587
>> EVERYBODY KNOWS WHAT'S 

1938
01:23:07,587 --> 01:23:08,922
HAPPENING IN UKRAINE AND THE WAR

1939
01:23:08,922 --> 01:23:11,090
IN UKRAINE.

1940
01:23:11,090 --> 01:23:13,159
I'VE BEEN ABLE -- OUR FOUNDATION

1941
01:23:13,159 --> 01:23:16,863
HAS BEEN ABLE TO PARTNER WITH 

1942
01:23:16,863 --> 01:23:18,898
SOMEONE WHO SERVED ON TWO 

1943
01:23:18,898 --> 01:23:21,234
PRESIDENT SHALL CABINETS.

1944
01:23:21,234 --> 01:23:23,870
THERE'S A LOT OF FAMILIES WITH 

1945
01:23:23,870 --> 01:23:26,372
SPECIAL NEEDS IN WAR-TORN AREAS 

1946
01:23:26,372 --> 01:23:28,741
THAT ARE HAVING TO RESCUE AND 

1947
01:23:28,741 --> 01:23:31,144
BRING THEM OUT OF COMBAT ZONES 

1948
01:23:31,144 --> 01:23:32,612
AND THEY CREATE HELP CENTERS.

1949
01:23:32,612 --> 01:23:34,280
THEY ALLOW THEM TO BE ABLE TO 

1950
01:23:34,280 --> 01:23:36,382
HAVE A PLACE TO LIVE FOR AT 

1951
01:23:36,382 --> 01:23:38,484
LEAST A YEAR, FOOD TO EAT AND 

1952
01:23:38,484 --> 01:23:39,352
ALSO THE BIG NEED THEY HAVE 

1953
01:23:39,352 --> 01:23:49,596
OBVIOUSLY IS SERVICES.

1954
01:23:49,596 --> 01:23:50,997
CHAMPIONS FOUNDATION JUST 

1955
01:23:50,997 --> 01:23:52,932
DEDICATED THE FIRST SPECIAL 

1956
01:23:52,932 --> 01:23:59,439
NEEDS DEVELOPMENTAL CENTER AND 

1957
01:23:59,439 --> 01:24:03,042
THERE'S 13 NEEDS WE'LL PUT 

1958
01:24:03,042 --> 01:24:05,144
SPECIAL NEEDS DEVELOPMENTAL 

1959
01:24:05,144 --> 01:24:08,915
CENTERS WITH KIDS CAN GET 

1960
01:24:08,915 --> 01:24:10,216
SERVICES AND HELP.

1961
01:24:10,216 --> 01:24:12,051
COOL WE'RE ABLE TO DO THAT AND 

1962
01:24:12,051 --> 01:24:13,653
BE A PART OF THAT.

1963
01:24:13,653 --> 01:24:16,923
>> THANK YOU FOR SHARING
THAT 

1964
01:24:16,923 --> 01:24:27,200
WONDERFUL WORK.

1965
01:24:32,372 --> 01:24:35,341
I WANTED TO GIVE AN UPDATE ON 

1966
01:24:35,341 --> 01:24:36,676
THE SUMMARY OF ADVANCES.

1967
01:24:36,676 --> 01:24:39,479
I CHECK OFF THE DIFFERENT 

1968
01:24:39,479 --> 01:24:41,447
ACTIONS THAT HAVE HAPPENED ON 

1969
01:24:41,447 --> 01:24:42,882
THE 2022 ADVANCES INCLUDING 

1970
01:24:42,882 --> 01:24:44,584
YOU'VE ALL NOMINATED ARTICLES.

1971
01:24:44,584 --> 01:24:46,686
WE DISCUSSED THEM IN COMMITTEE.

1972
01:24:46,686 --> 01:24:48,921
WE VOTED ON THE TOP 20 ARTICLES 

1973
01:24:48,921 --> 01:24:51,891
BACK IN FEBRUARY TO MATCH.

1974
01:24:51,891 --> 01:24:53,660
AND NOW THE ARTICLE SUMMARIES 

1975
01:24:53,660 --> 01:24:56,929
AND DRAFT PUBLICATION ARE IN THE

1976
01:24:56,929 --> 01:24:58,364
WORKS.

1977
01:24:58,364 --> 01:25:00,933
WE ARE EXPECTING PUBLICATION 

1978
01:25:00,933 --> 01:25:02,268
PRETTY SOON BUT DIDN'T QUITE 

1979
01:25:02,268 --> 01:25:03,569
MAKE IT FOR THE COMMITTEE 

1980
01:25:03,569 --> 01:25:04,937
MEETING.

1981
01:25:04,937 --> 01:25:07,473
BE EXPECTING TO HEAR ABOUT THE 

1982
01:25:07,473 --> 01:25:08,775
PUBLICATION SHORTLY.

1983
01:25:08,775 --> 01:25:11,444
WE'LL GIVE THE IACC MEMBERS A 

1984
01:25:11,444 --> 01:25:13,713
BRIEF PREVIEW OF THE DRAFT 

1985
01:25:13,713 --> 01:25:14,847
BEFORE IT'S RELEASED TO THE 

1986
01:25:14,847 --> 01:25:16,783
PUBLIC BUT WE EXPECT IT TO BE 

1987
01:25:16,783 --> 01:25:19,052
HAPPENING T IING SOON.

1988
01:25:19,052 --> 01:25:23,589
WE WANTED YOU TO HAVE AN UPDATE 

1989
01:25:23,589 --> 01:25:33,733
ON THAT.

1990
01:25:34,634 --> 01:25:39,505
NEXT,  I WANTED TO TALK ABOUT 

1991
01:25:39,505 --> 01:25:42,408
WHAT WE'LL BE DOING IN THE FINAL

1992
01:25:42,408 --> 01:25:43,443
YEAR OF THE CURRENT IACC THAT'S 

1993
01:25:43,443 --> 01:25:44,744
GONE BY PRETTY FAST.

1994
01:25:44,744 --> 01:25:46,979
THE AUTHORIZATION FOR THIS 

1995
01:25:46,979 --> 01:25:48,848
COMMITTEE ENDS SEPTEMBER 30, 

1996
01:25:48,848 --> 01:25:49,048
2024.

1997
01:25:49,048 --> 01:25:51,384
AND WE WANTED TO TALK WITH YOU 

1998
01:25:51,384 --> 01:25:53,186
ABOUT WHAT REMAINING BUSINESS WE

1999
01:25:53,186 --> 01:25:53,786
WANT TO COMPLETE BEFORE THAT 

2000
01:25:53,786 --> 01:26:01,260
TIME.

2001
01:26:01,260 --> 01:26:03,062
ONE IS THE IACC SUMMARY OF 

2002
01:26:03,062 --> 01:26:03,329
ADVANCES.

2003
01:26:03,329 --> 01:26:08,434
WE CONTINUE TO INVITE YOU ALL TO

2004
01:26:08,434 --> 01:26:10,103
SHARE YOUR ADVANCES AND THANK 

2005
01:26:10,103 --> 01:26:11,904
YOU FOR THOSE WHO PROVIDED 

2006
01:26:11,904 --> 01:26:12,805
NOMINATIONS THIS ROUND AND WE'LL

2007
01:26:12,805 --> 01:26:16,275
BE TALKING ABOUT THAT SHORTLY.

2008
01:26:16,275 --> 01:26:17,410
THAT'S A PROJECT WE'LL WANT TO 

2009
01:26:17,410 --> 01:26:18,444
COMPLETE SO WE'LL HAVE YOU VOTE 

2010
01:26:18,444 --> 01:26:20,446
ON THAT PROBABLY IN JANUARY 2024

2011
01:26:20,446 --> 01:26:23,750
TO GET THE PUBLICATION OUT 

2012
01:26:23,750 --> 01:26:30,089
HOPEFULLY AROUND SPRING OF 2024.

2013
01:26:30,089 --> 01:26:32,091
THAT WOULD LIKELY BE THE LAST 

2014
01:26:32,091 --> 01:26:33,593
ONE BEFORE WE GO OUT OF 

2015
01:26:33,593 --> 01:26:35,461
COMMISSION UNLESS WE FINISH THE 

2016
01:26:35,461 --> 01:26:39,599
2024 VERSION.

2017
01:26:39,599 --> 01:26:41,300
WE'LL BEGIN COLLECTING 

2018
01:26:41,300 --> 01:26:42,635
NOMINATIONS FOR THE 2024 SUMMARY

2019
01:26:42,635 --> 01:26:44,937
OF ADVANCES AS WE GET INTO 

2020
01:26:44,937 --> 01:26:47,240
JANUARY.

2021
01:26:47,240 --> 01:26:49,542
YOU CAN EXPECT THROUGHOUT YOUR 

2022
01:26:49,542 --> 01:26:50,977
TERM YOU'LL BE SUBMITTING ITEMS 

2023
01:26:50,977 --> 01:27:01,454
FOR THE SUMMARY OF ADVANCES.

2024
01:27:05,458 --> 01:27:06,692
 WE CALLED IT 2021 TO 2023 

2025
01:27:06,692 --> 01:27:08,494
BECAUSE IT TAKES THAT LONG TO 

2026
01:27:08,494 --> 01:27:09,295
GET INPUT FROM ACROSS THE 

2027
01:27:09,295 --> 01:27:09,896
COMMUNITY AND PUT TOGETHER A 

2028
01:27:09,896 --> 01:27:15,735
PLAN.

2029
01:27:15,735 --> 01:27:17,436
IT WOULD BE DIFFICULT TO DO IN A

2030
01:27:17,436 --> 01:27:18,938
SINGLE YEAR.

2031
01:27:18,938 --> 01:27:20,973
WE FOCUSSED OUR EFFORTS AND MADE

2032
01:27:20,973 --> 01:27:24,310
A NICE CAN COMPREHENSIVE PLAN.

2033
01:27:24,310 --> 01:27:28,848
WHAT WAS DONE WITH THE LAST 

2034
01:27:28,848 --> 01:27:31,017
COMMITTEE IS THEY PUT OUT A 

2035
01:27:31,017 --> 01:27:31,684
COMPREHENSIVE STRATEGIC PLAN AND

2036
01:27:31,684 --> 01:27:36,522
FOLLOWING YEAR HAD A BRIEFER 

2037
01:27:36,522 --> 01:27:38,257
UPDATE PROVIDED AND I'LL SHARE 

2038
01:27:38,257 --> 01:27:39,859
THAT ABOUT THE POSSIBILITY.

2039
01:27:39,859 --> 01:27:44,964
WE'RE REQUIRED TO PUT OUT AN 

2040
01:27:44,964 --> 01:27:49,969
UPDATE IN 2024.

2041
01:27:49,969 --> 01:27:51,704
WE TALKED ABOUT THE FACT THAT WE

2042
01:27:51,704 --> 01:27:53,873
HAD A REPORT ON CO-OCCURRING 

2043
01:27:53,873 --> 01:27:54,774
PHYSICAL AND MENTAL HEALTH 

2044
01:27:54,774 --> 01:27:56,409
CONDITIONS AND THEIR IMPACTS ON 

2045
01:27:56,409 --> 01:27:58,611
HEALTH OUTCOMES FOR INDIVIDUALS 

2046
01:27:58,611 --> 01:28:03,983
ON THE AUTISM SPECTRUM AND THIS 

2047
01:28:03,983 --> 01:28:07,820
REPORT WAS PARTIALLY COMPLETED 

2048
01:28:07,820 --> 01:28:10,556
AND YOU AGREED TO WORK ON THE 

2049
01:28:10,556 --> 01:28:12,925
COMPLETION AND THE OFFICE HAS 

2050
01:28:12,925 --> 01:28:15,027
BEEN BEHIND THE SCENES TRYING TO

2051
01:28:15,027 --> 01:28:16,495
GET THAT PROJECT TEED UP AS 

2052
01:28:16,495 --> 01:28:18,731
WE'RE FINISHING UP OTHER REPORTS

2053
01:28:18,731 --> 01:28:20,967
AND THE STRATEGIC PLAN IS NOW 

2054
01:28:20,967 --> 01:28:26,205
DONE.

2055
01:28:26,205 --> 01:28:27,707
THEY'LL BE WORKING WITH THE 

2056
01:28:27,707 --> 01:28:30,243
CHAIR ON UPDATING THE DRAFT AND 

2057
01:28:30,243 --> 01:28:31,177
WE'LL SHARE IT WITH THE IACC FOR

2058
01:28:31,177 --> 01:28:41,387
YOUR REVIEW.

2059
01:28:44,490 --> 01:28:45,958
WE CAME UP WITH A COUPLE OPTIONS

2060
01:28:45,958 --> 01:28:46,959
AND WANT TO SHARE THOSE AND GET 

2061
01:28:46,959 --> 01:28:51,397
YOUR FEEDBACK .

2062
01:28:51,397 --> 01:28:54,367
OPTION 1 WOULD BE TO FINISH OUR 

2063
01:28:54,367 --> 01:28:59,205
2024 STRATEGIC PLAN UPDATE.

2064
01:28:59,205 --> 01:29:04,443
WE COULD DO AN UPDATE AND FOCUS 

2065
01:29:04,443 --> 01:29:08,114
ON SUMMARIZING IACC AB  

2066
01:29:08,114 --> 01:29:09,682
ACTIVITIES RELATED TO THE 

2067
01:29:09,682 --> 01:29:10,149
STRATEGIC PLAN.

2068
01:29:10,149 --> 01:29:12,852
THE 2018 TO 2019 STRATEGIC PLAN 

2069
01:29:12,852 --> 01:29:14,754
IS LIKE THAT IT. HAS SECTIONS 

2070
01:29:14,754 --> 01:29:16,122
THAT TALK ABOUT DISCUSSIONS 

2071
01:29:16,122 --> 01:29:19,091
WE'VE HAD IN COMMITTEE ON 

2072
01:29:19,091 --> 01:29:20,092
VARIOUS TOPICS IN THE STRATEGIC 

2073
01:29:20,092 --> 01:29:25,498
PLAN AND AGENCY ACTION TESTS 

2074
01:29:25,498 --> 01:29:27,700
THAT RELATE TO WHAT'S IN THE 

2075
01:29:27,700 --> 01:29:30,670
STRATEGIC PLAN SO IT'S SHORT OF 

2076
01:29:30,670 --> 01:29:34,373
A BRIEFER SUMMARY DOCUMENT BUT 

2077
01:29:34,373 --> 01:29:35,441
DOESN'T INTRODUCE ANY 

2078
01:29:35,441 --> 01:29:35,808
RECOMMENDATIONS.

2079
01:29:35,808 --> 01:29:37,977
OPTION 2, WHICH IS ANOTHER 

2080
01:29:37,977 --> 01:29:44,116
POSSIBILITY IS THAT WE COULD 

2081
01:29:44,116 --> 01:29:51,757
TAKE THE 2024 UPDATE AND MERGE 

2082
01:29:51,757 --> 01:29:52,858
THE EXISTING CO-OCCURRING 

2083
01:29:52,858 --> 01:29:54,727
CONDITIONS REPORT AND DO A 

2084
01:29:54,727 --> 01:29:56,762
HIGHLIGHT ON CO-OCCURRING 

2085
01:29:56,762 --> 01:29:59,565
CONDITIONS AND MAKE THAT OUR 

2086
01:29:59,565 --> 01:30:05,371
PLAN UPDATE.

2087
01:30:05,371 --> 01:30:07,473
THOSE ARE TWO OPTION.

2088
01:30:07,473 --> 01:30:12,311
I DON'T KNOW IF ANYONE LOGGED 

2089
01:30:12,311 --> 01:30:12,812
INTO ZOOM.

2090
01:30:12,812 --> 01:30:15,281
I THINK WHAT WE CAN DO FOR 

2091
01:30:15,281 --> 01:30:17,183
PEOPLE NOT LOGGED IN THE ROOM IS

2092
01:30:17,183 --> 01:30:19,752
LOOK FOR HAND VOTES BUT WE HAVE 

2093
01:30:19,752 --> 01:30:20,953
ARRANGED TO HAVE SOME OPTIONS 

2094
01:30:20,953 --> 01:30:22,588
FOR YOU TO VOTE SO WE CAN GET 

2095
01:30:22,588 --> 01:30:23,823
YOUR FEEDBACK ON WHAT YOU'D LIKE

2096
01:30:23,823 --> 01:30:28,928
TO DO AS A NEXT STEP.

2097
01:30:28,928 --> 01:30:33,933
I WANTED KNOW WHETHER YOU'D 

2098
01:30:33,933 --> 01:30:42,141
PREFER 

2099
01:30:42,141 --> 01:30:44,944
>> I REMAIN CONCERNED THAT
WE 

2100
01:30:44,944 --> 01:30:47,246
ESSENTIALLY LOST A YEAR DUE TO 

2101
01:30:47,246 --> 01:30:49,315
POLITICAL ISSUES.

2102
01:30:49,315 --> 01:30:53,452
WE DID NOT MEET AND AS SUCH HAVE

2103
01:30:53,452 --> 01:30:54,687
NOT HAD A TRUE TERM.

2104
01:30:54,687 --> 01:30:57,890
THIS IN MY OPINION IS ESPECIALLY

2105
01:30:57,890 --> 01:31:01,060
PROBLEMATIC GIVEN A NUMBER OF 

2106
01:31:01,060 --> 01:31:03,029
MEMBERS HAILED FROM UNDER 

2107
01:31:03,029 --> 01:31:04,697
REPRESENTED GROUPS.

2108
01:31:04,697 --> 01:31:07,166
THE QUESTION IS THERE ANY 

2109
01:31:07,166 --> 01:31:10,269
RECOURSE TO ENABLE THEM TO BE 

2110
01:31:10,269 --> 01:31:11,470
EXT

2111
01:31:11,470 --> 01:31:11,771
EXTENDED.

2112
01:31:11,771 --> 01:31:13,105
>> TO ANSWER THE QUESTION
ABOUT 

2113
01:31:13,105 --> 01:31:13,906
THE TERM FOR PEOPLE ON THE 

2114
01:31:13,906 --> 01:31:15,641
COMMITTEE.

2115
01:31:15,641 --> 01:31:17,243
AS YOU KNOW, THE COMMITTEE IS 

2116
01:31:17,243 --> 01:31:17,877
AUTHORIZED BY LEGISLATION AND 

2117
01:31:17,877 --> 01:31:22,014
THAT LEGISLATION HAS A SUN SET 

2118
01:31:22,014 --> 01:31:22,948
DATE.

2119
01:31:22,948 --> 01:31:24,817
HOWEVER I KNOW IN THE ADVOCACY 

2120
01:31:24,817 --> 01:31:26,452
COMMITTEE MANY ARE WORK ON THE 

2121
01:31:26,452 --> 01:31:28,654
AUTHORIZATION TO HOPEFULLY 

2122
01:31:28,654 --> 01:31:31,957
HAPPEN BEFORE THE SUN SET DATE.

2123
01:31:31,957 --> 01:31:32,925
THE EXISTENCE OF THE DIFFERENT 

2124
01:31:32,925 --> 01:31:33,559
PROGRAMS IN THE LEGISLATION WILL

2125
01:31:33,559 --> 01:31:38,264
CONTINUE.

2126
01:31:38,264 --> 01:31:43,536
WITH THE TERMS OF THE MEMBERS OF

2127
01:31:43,536 --> 01:31:50,309
THE COMMITTEE THEY'LL END ON  

2128
01:31:50,309 --> 01:31:52,945
THE END OF TERM AND THE CURRENT 

2129
01:31:52,945 --> 01:31:54,647
LEGISLATION ALLOWS TWO TERMS FOR

2130
01:31:54,647 --> 01:31:57,883
FEDERAL MEMBERS JUST CONTINUE TO

2131
01:31:57,883 --> 01:31:59,351
SERVE WHOEVER IS NOMINATED TO 

2132
01:31:59,351 --> 01:32:00,252
SERVE FOR THEIR AGENCY.

2133
01:32:00,252 --> 01:32:04,924
BUT FOR MOST THE PUBLIC MEMBERS 

2134
01:32:04,924 --> 01:32:08,294
ON OUR COMMITTEE, I'VE ONLY BEEN

2135
01:32:08,294 --> 01:32:10,563
SERVING FOR YOUR FIRST TERM AND 

2136
01:32:10,563 --> 01:32:11,897
THAT WOULD ENABLE YOU TO 

2137
01:32:11,897 --> 01:32:12,765
CONTINUE IF YOU'D LIKE TO BE ON 

2138
01:32:12,765 --> 01:32:15,067
THE COMMITTEE FOR LONGER BUT IT 

2139
01:32:15,067 --> 01:32:20,005
WILL BE AN OPEN CALL TO THE 

2140
01:32:20,005 --> 01:32:23,476
PUBLIC AND THE SECRETARY WILL 

2141
01:32:23,476 --> 01:32:25,945
SELECT FROM ALL THE MANY 

2142
01:32:25,945 --> 01:32:26,212
NOMINEES.

2143
01:32:26,212 --> 01:32:28,547
>> I DON'T HAVE A DOG IN
THE 

2144
01:32:28,547 --> 01:32:29,682
FIGHT FOR WHICH MILLION TO 

2145
01:32:29,682 --> 01:32:31,550
CHOOSE BUT WHAT I'D LIKE US TO 

2146
01:32:31,550 --> 01:32:36,856
FOCUS ON IN LIGHT OF OUR 

2147
01:32:36,856 --> 01:32:38,057
SPEAKERS TODAY IS ADD AN ELEMENT

2148
01:32:38,057 --> 01:32:43,429
TO LIFE LONG TRAUMA.

2149
01:32:43,429 --> 01:32:47,466
WHETHER IT'S THE BIG "T" TRAUMA,

2150
01:32:47,466 --> 01:32:51,537
SEXUAL TRAUMA OR ABUSE OR THE 

2151
01:32:51,537 --> 01:32:55,508
SMALL MORE PERSISTENT TRAUMA OF 

2152
01:32:55,508 --> 01:32:57,443
MICROAGGRESSION AND LACK OF 

2153
01:32:57,443 --> 01:32:57,843
SERVICES.

2154
01:32:57,843 --> 01:32:59,512
WHEN WHEN I LOOK AT THE AUTISM 

2155
01:32:59,512 --> 01:33:03,249
POMP AND FAMILY MEMBERS A LOT OF

2156
01:33:03,249 --> 01:33:04,783
THE MENTAL HEALTH ISSUES WE'VE 

2157
01:33:04,783 --> 01:33:06,318
EXPERIENCED ARE SPECIFICALLY 

2158
01:33:06,318 --> 01:33:12,458
RELATED TO SYSTEMIC TRAUMA FOR 

2159
01:33:12,458 --> 01:33:18,197
PERSONAL TRAUMA OR MY SON WAS 

2160
01:33:18,197 --> 01:33:20,966
PULLED INTO A ROOM WITH TWO 

2161
01:33:20,966 --> 01:33:23,335
TEACHERS AND TOLD NOT TO TELL 

2162
01:33:23,335 --> 01:33:28,974
MOM AND IF WE GO TO THAT PART OF

2163
01:33:28,974 --> 01:33:32,945
THE LAND HE THINK THAT TEACHER 

2164
01:33:32,945 --> 01:33:35,447
WILL BE THERE AND HAS A STRONG 

2165
01:33:35,447 --> 01:33:36,148
PROCESSING SYSTEM.

2166
01:33:36,148 --> 01:33:42,421
WHEN HE THINKS OF TRAUMA, HE 

2167
01:33:42,421 --> 01:33:44,256
VISUALIZES IT LIKE A MOVIE 

2168
01:33:44,256 --> 01:33:44,924
REPLAY 

2169
01:33:44,924 --> 01:33:47,426
IT.

2170
01:33:47,426 --> 01:33:50,429
THAT'S A TINY EXAMPLE BUT 

2171
01:33:50,429 --> 01:33:51,497
AFFECTED HIM HIS WHOLE LIFE.

2172
01:33:51,497 --> 01:33:55,100
AS WE LOOK AT THE STRATEGIC PLAN

2173
01:33:55,100 --> 01:33:58,437
WE NEED TO COMMENT AND ADDRESS 

2174
01:33:58,437 --> 01:33:59,471
THE EXPERIENCES IS A GREAT 

2175
01:33:59,471 --> 01:34:08,914
ADDITION.

2176
01:34:08,914 --> 01:34:11,083
>> THERE'S AN OPPORTUNITY
TO 

2177
01:34:11,083 --> 01:34:11,717
PROVIDE MORE INFORMATION ON 

2178
01:34:11,717 --> 01:34:15,821
TRAUMA AND WE'LL HAVE A 

2179
01:34:15,821 --> 01:34:17,389
PRESENTATION TO HELP INFORM 

2180
01:34:17,389 --> 01:34:17,590
THAT.

2181
01:34:17,590 --> 01:34:21,460
THANK YOU FOR SHARING THAT.

2182
01:34:21,460 --> 01:34:26,432
ANOTHER QUESTION, LARRY.

2183
01:34:26,432 --> 01:34:31,403
>> THANK YOU.

2184
01:34:31,403 --> 01:34:35,474
>> I THINK WE HAD
EXTENSIVE 

2185
01:34:35,474 --> 01:34:36,575
DISCUSSION AROUND LIFE SPAN AND 

2186
01:34:36,575 --> 01:34:38,877
GETTING KIDS TO ADULTS WHICH I 

2187
01:34:38,877 --> 01:34:49,421
THINK WE HAVE SUCCESSFULLY DONE.

2188
01:34:55,928 --> 01:34:57,563
I WOULD PUT AN EMPHASIS ON 

2189
01:34:57,563 --> 01:35:08,007
PEOPLE WITH SEVERE AUTISM.

2190
01:35:13,746 --> 01:35:14,680
>> THANK YOU.

2191
01:35:14,680 --> 01:35:16,582
THAT CAN BE A PART OF EITHER 

2192
01:35:16,582 --> 01:35:19,585
OPTIONS AND WHETHER IT'S A STAND

2193
01:35:19,585 --> 01:35:21,687
ALONE REPORT OR MADE INTO PART 

2194
01:35:21,687 --> 01:35:24,490
OF THE STRATEGIC PLAN UPDATE IT 

2195
01:35:24,490 --> 01:35:26,058
DOES INCLUDE SOME HIGH SUPPORT 

2196
01:35:26,058 --> 01:35:27,059
NEEDS ISSUES BUT WE CAN 

2197
01:35:27,059 --> 01:35:28,927
CERTAINLY EXPAND THAT AND MY 

2198
01:35:28,927 --> 01:35:30,029
EXPECTATION IS THAT WHEN WE 

2199
01:35:30,029 --> 01:35:32,298
SHARE THE THIS BACK WITH THE 

2200
01:35:32,298 --> 01:35:34,133
COMMITTEE OUR TEAM HAS ALREADY 

2201
01:35:34,133 --> 01:35:36,235
IDENTIFIED THEMES THAT COME FROM

2202
01:35:36,235 --> 01:35:37,936
OUR STRATEGIC PLAN WE THINK YOU 

2203
01:35:37,936 --> 01:35:39,505
MAY BE INTERESTED IN 

2204
01:35:39,505 --> 01:35:40,606
HIGHLIGHTING IN THE CO-OCCURRING

2205
01:35:40,606 --> 01:35:42,074
CONDITIONS REPORT BUT HAVE A 

2206
01:35:42,074 --> 01:35:43,409
PROCESS YOU'LL SEE UPCOMING FOR 

2207
01:35:43,409 --> 01:35:47,479
US TO GET YOUR INPUT SO WE CAN 

2208
01:35:47,479 --> 01:35:48,247
EXPAND THAT REPORT.

2209
01:35:48,247 --> 01:35:53,819
ANY OTHER COMMENTS OR QUESTIONS?

2210
01:35:53,819 --> 01:35:55,988
SO I'D LIKE TO GET YOUR FEEDBACK

2211
01:35:55,988 --> 01:35:58,324
ON BETWEEN THE TWO OPTIONS WHICH

2212
01:35:58,324 --> 01:36:00,926
ONE YOU'D LIQUOR IF YOU HAVE 

2213
01:36:00,926 --> 01:36:03,195
SOMETHING ELSE TO PROPOSE.

2214
01:36:03,195 --> 01:36:05,998
THE FIRST ONE IS A STRATEGIC 

2215
01:36:05,998 --> 01:36:07,900
PLAN UPDATE THAT IS IT'S OWN 

2216
01:36:07,900 --> 01:36:09,368
DOCUMENT FOCUSSED ON COMMITTEE 

2217
01:36:09,368 --> 01:36:11,503
ACTIVITIES ACROSS THE BOARD THAT

2218
01:36:11,503 --> 01:36:13,739
RELATE TO THE STRATEGIC PLAN AND

2219
01:36:13,739 --> 01:36:17,476
WE WOULD BE PREPARING SUMMARIES 

2220
01:36:17,476 --> 01:36:27,953
OF THESE ACTIVITIES IN THE 

2221
01:36:44,737 --> 01:36:46,772
REPORT -- OPTION 1 WE WOULD HAVE

2222
01:36:46,772 --> 01:36:48,941
A SEPARATE STRATEGIC PLAN UPDATE

2223
01:36:48,941 --> 01:36:50,542
AND SEPARATE CO-OCCURRING 

2224
01:36:50,542 --> 01:36:50,943
CONDITIONS REPORT.

2225
01:36:50,943 --> 01:36:52,277
THEY WOULD BE TWO REPORTS WE 

2226
01:36:52,277 --> 01:36:54,079
FINISH IN THE NEXT YEAR.

2227
01:36:54,079 --> 01:36:55,848
OPTION 2 IS TO TAKE THESE TWO 

2228
01:36:55,848 --> 01:36:58,884
THINGS AND MERGE THEM INTO ONE 

2229
01:36:58,884 --> 01:37:00,953
AND CALL IT ALL A STRATEGIC PLAN

2230
01:37:00,953 --> 01:37:02,788
UPDATE AND HIGHLIGHTED EMPHASIS 

2231
01:37:02,788 --> 01:37:04,390
ON CO-OCCURRING CONDITIONS AND 

2232
01:37:04,390 --> 01:37:05,157
HEALTH OUTCOMES.

2233
01:37:05,157 --> 01:37:08,093
SO I WANTED YOU TO GO AHEAD AND 

2234
01:37:08,093 --> 01:37:10,396
VOTE ON ZOOM OR IF YOU NEED TO 

2235
01:37:10,396 --> 01:37:12,931
DO IT BY HAND IF YOU DON'T HAVE 

2236
01:37:12,931 --> 01:37:15,134
ZOOM TO LET ME KNOW WHICH OF 

2237
01:37:15,134 --> 01:37:15,934
THESE TWO OPTIONS WOULD YOU 

2238
01:37:15,934 --> 01:37:16,368
PREFER.

2239
01:37:16,368 --> 01:37:18,404
DO YOU WANT US TO WORK ON TWO 

2240
01:37:18,404 --> 01:37:28,781
REPORTS OR ONE REPORT?

2241
01:37:47,332 --> 01:37:49,668
>> OPTION 1 IS FOCUSSED ON

2242
01:37:49,668 --> 01:37:51,370
ACTIVITIES AND SEPARATE REPORT 

2243
01:37:51,370 --> 01:37:52,271
FOCUSSED ON CO-OCCURRING 

2244
01:37:52,271 --> 01:37:52,571
CONDITIONS.

2245
01:37:52,571 --> 01:37:54,973
>> IF YOU VOTED ONLINE
DON'T 

2246
01:37:54,973 --> 01:37:55,541
VOTE HERE.

2247
01:37:55,541 --> 01:37:56,942
BUT IF YOU HAVE NOT VOTED ONLINE

2248
01:37:56,942 --> 01:38:01,814
BECAUSE YOU'RE NOT ONLINE, GO 

2249
01:38:01,814 --> 01:38:04,950
AHEAD AND RAISE YOUR HAND FOR 

2250
01:38:04,950 --> 01:38:15,260
ONE, TWO OR THREE.

2251
01:38:29,007 --> 01:38:30,876
OPTION 2 IS A STRATEGIC PLAN 

2252
01:38:30,876 --> 01:38:32,678
UPDATE FOCUSSED ON CO-OCCURRING 

2253
01:38:32,678 --> 01:38:33,412
CONDITIONS.

2254
01:38:33,412 --> 01:38:35,781
MERGING THE TWO DOCUMENTS 

2255
01:38:35,781 --> 01:38:45,958
TOGETHER.

2256
01:38:50,028 --> 01:38:52,498
[LISTING NAMES]

2257
01:38:52,498 --> 01:39:03,041
>> WOULD ANYONE LIKE TO
VOTE FOR

2258
01:39:16,355 --> 01:39:17,523
OPTION 3 WHICH IS OTHER OR 

2259
01:39:17,523 --> 01:39:23,829
ABSTAIN?

2260
01:39:23,829 --> 01:39:24,930
WE DON'T HAVE A TOPIC FOR MORE 

2261
01:39:24,930 --> 01:39:32,170
REPORTS.

2262
01:39:32,170 --> 01:39:33,939
IT'S SOUNDING LIKE OPTION 2 IS 

2263
01:39:33,939 --> 01:39:35,073
THE CHOICE TO MERGE THE 

2264
01:39:35,073 --> 01:39:37,509
STRATEGIC PLAN UPDATE PROCESS 

2265
01:39:37,509 --> 01:39:39,011
WITH THE CO-OCCURRING CONDITIONS

2266
01:39:39,011 --> 01:39:41,613
REPORT THAT'S PARTIALLY WRITTEN 

2267
01:39:41,613 --> 01:39:41,980
ALREADY.

2268
01:39:41,980 --> 01:39:44,917
THANK YOU SO MUCH FOR SHARING 

2269
01:39:44,917 --> 01:39:46,084
THAT WITH US.

2270
01:39:46,084 --> 01:39:49,021
THAT'S WHAT WE'LL BE WORKING ON.

2271
01:39:49,021 --> 01:39:50,789
WE'RE GOING TO BE LOOKING AT THE

2272
01:39:50,789 --> 01:39:53,525
DRAFT WE HAVE WITH JULIE TAYLOR 

2273
01:39:53,525 --> 01:39:55,193
AND STARTING TO FILL IN WHERE WE

2274
01:39:55,193 --> 01:39:56,695
THINK SOME POSSIBLE GAP ARE 

2275
01:39:56,695 --> 01:39:58,397
BASED ON THE WORK WE'VE ALREADY 

2276
01:39:58,397 --> 01:40:00,265
DONE WITH THE STRATEGIC PLAN AND

2277
01:40:00,265 --> 01:40:04,536
WE WILL BE GATHERING INPUT FROM 

2278
01:40:04,536 --> 01:40:06,271
THE COMMITTEE BY ONE OF THESE 

2279
01:40:06,271 --> 01:40:08,807
SURVEY MONKEY SURVEYS TO GET YOU

2280
01:40:08,807 --> 01:40:10,475
TO PROVIDE US WITH WRITTEN 

2281
01:40:10,475 --> 01:40:14,079
FEEDBACK OR IF YOU PREFER TO 

2282
01:40:14,079 --> 01:40:16,181
TALK WITH US WE CAN ALWAYS 

2283
01:40:16,181 --> 01:40:17,950
ARRANGE A CALL AND HEAR YOUR 

2284
01:40:17,950 --> 01:40:18,216
FEEDBACK.

2285
01:40:18,216 --> 01:40:19,751
CAN I GO TO THE NEXT SLIDE.

2286
01:40:19,751 --> 01:40:20,619
THANK YOU FOR MAKING THAT 

2287
01:40:20,619 --> 01:40:20,953
DECISION.

2288
01:40:20,953 --> 01:40:28,460
WE'LL MOVE FORWARD TO THAT.

2289
01:40:28,460 --> 01:40:29,227
ANTICIPATING EITHER ONE THEIR 

2290
01:40:29,227 --> 01:40:31,229
OPTIONS WE'D LIKE YOU TO LET US 

2291
01:40:31,229 --> 01:40:37,636
KNOW IF YOU'D LIKE US TO DO A 

2292
01:40:37,636 --> 01:40:40,539
REQUEST FOR INFORMATION OR CALL 

2293
01:40:40,539 --> 01:40:41,907
FOR PUBLIC COMMENT TO GET FRESH 

2294
01:40:41,907 --> 01:40:43,408
INPUT FROM THE COMMUNITY ON THE 

2295
01:40:43,408 --> 01:40:44,943
ISSUE AND IF YOU'D LIKE TO OUR 

2296
01:40:44,943 --> 01:40:46,612
OFFICE WILL PUT ON THE STREET 

2297
01:40:46,612 --> 01:40:47,512
AND COLLECT INFORMATION FROM 

2298
01:40:47,512 --> 01:40:48,146
MEMBERS OF THE COMMUNITY TO 

2299
01:40:48,146 --> 01:40:53,452
SHARE WHAT THEY THINK ARE THE 

2300
01:40:53,452 --> 01:40:56,922
MOST IMPORTANT ISSUES RELATED TO

2301
01:40:56,922 --> 01:41:07,366
MENTAL HEALTH CONDITIONS.

2302
01:41:08,400 --> 01:41:11,503
>> I'M SEEING A LOT OF
BUZZ 

2303
01:41:11,503 --> 01:41:20,946
ACROSS THE COUNTRY WITH 

2304
01:41:20,946 --> 01:41:28,920
NEURODIVERGENCE AND ADHD -- 

2305
01:41:28,920 --> 01:41:32,924
[INAUDIBLE] 

2306
01:41:32,924 --> 01:41:35,494
>> ADHD IS ALREADY A TOPIC

2307
01:41:35,494 --> 01:41:36,828
WITHIN THE DRAFT REPORT WE HAVE 

2308
01:41:36,828 --> 01:41:39,264
BUT I KNOW THERE'S BEEN A LOT OF

2309
01:41:39,264 --> 01:41:40,799
RESEARCH THAT'S HAPPED SINCE 

2310
01:41:40,799 --> 01:41:42,300
2019 THAT'S NEW SO WE WOULD WANT

2311
01:41:42,300 --> 01:41:44,936
TO UPDATE EVERYTHING TO THE 

2312
01:41:44,936 --> 01:41:47,506
LATEST IN RESEARCH.

2313
01:41:47,506 --> 01:41:50,175
BUT THAT IS AN AREA WE HAVE IN 

2314
01:41:50,175 --> 01:41:51,209
THE CURRENT DRAFT.

2315
01:41:51,209 --> 01:41:55,480
>> CAN WE ALSO TALK ABOUT 

2316
01:41:55,480 --> 01:41:59,785
PERHAPS DIAGNOSIS BECAUSE I'M 

2317
01:41:59,785 --> 01:42:04,056
SEEING A LOT OF THAT AS WELL.

2318
01:42:04,056 --> 01:42:04,556
-- 

2319
01:42:04,556 --> 01:42:06,591
>> I THINK THAT'S AN
IMPORTANT 

2320
01:42:06,591 --> 01:42:08,093
ISSUE THE GROUP DEALT WITH IN 

2321
01:42:08,093 --> 01:42:09,261
THE LAST ITERATION.

2322
01:42:09,261 --> 01:42:11,496
I DON'T THINK THAT CONFORMS TO 

2323
01:42:11,496 --> 01:42:14,666
THE ISSUES AROUND COMORBIDITIES 

2324
01:42:14,666 --> 01:42:15,834
OR CO-OCCURRING CONDITIONS WHICH

2325
01:42:15,834 --> 01:42:18,870
WOULD BE THE POINT UNLESS YOU'RE

2326
01:42:18,870 --> 01:42:21,506
TALKING ABOUT DIAGNOSIS OF 

2327
01:42:21,506 --> 01:42:23,275
COMORBID AND COOCCURRING 

2328
01:42:23,275 --> 01:42:23,575
CONDITIONS.

2329
01:42:23,575 --> 01:42:33,452
[INAUDIBLE] 

2330
01:42:33,452 --> 01:42:35,253
>> YOU MAY WANT TO
REITERATE THE

2331
01:42:35,253 --> 01:42:36,254
COMMENTS IN THE SURVEY PUT OUT 

2332
01:42:36,254 --> 01:42:39,991
TO THE COMMITTEE.

2333
01:42:39,991 --> 01:42:48,333
CAN I SEE HANDS ON ZOOM.

2334
01:42:48,333 --> 01:42:50,736
>> I ALSO WANT TO MAKE A 

2335
01:42:50,736 --> 01:42:51,036
SUGGESTION.

2336
01:42:51,036 --> 01:42:55,607
COULD IT CONSIDER MERGING IN 

2337
01:42:55,607 --> 01:42:57,843
MAYBE A BRIEF REPORT FROM THE 

2338
01:42:57,843 --> 01:42:58,877
OTHER WORK GROUP ON HOUSING 

2339
01:42:58,877 --> 01:43:00,011
ISSUES AND HOMELESSNESS.

2340
01:43:00,011 --> 01:43:01,813
THAT WAS LEFT OVER FROM THE 

2341
01:43:01,813 --> 01:43:06,885
PRIOR ITERATION OF THE COMMITTEE

2342
01:43:06,885 --> 01:43:07,986
THAT HAVEN'T BEEN ADDRESSED YES 

2343
01:43:07,986 --> 01:43:09,888
AND WE HAD THE WORK GROUP AND 

2344
01:43:09,888 --> 01:43:11,223
THERE WAS NO FINAL REPORT ON THE

2345
01:43:11,223 --> 01:43:12,724
HOUSING ISSUES AND HOMELESSNESS.

2346
01:43:12,724 --> 01:43:15,360
I THINK THAT'S A REALLY MAJOR 

2347
01:43:15,360 --> 01:43:19,765
KEY FOCUS AND IT WOULD BE 

2348
01:43:19,765 --> 01:43:21,166
HELPFUL TO BRIEFLY INTEGRATE 

2349
01:43:21,166 --> 01:43:31,376
KNEE UPDATE.

2350
01:43:34,112 --> 01:43:35,280
>> HOUSING IS DIFFERENT
AND IF 

2351
01:43:35,280 --> 01:43:36,715
WE HAD A GENERAL STRATEGIC PLAN 

2352
01:43:36,715 --> 01:43:38,784
WE PROBABLY COULD COVER THAT BUT

2353
01:43:38,784 --> 01:43:40,919
I WOULD SAY WE WOULD WANT STAY 

2354
01:43:40,919 --> 01:43:43,021
FOCUSSED ON PHYSICAL AND MENTAL 

2355
01:43:43,021 --> 01:43:43,955
HEALTH AND THERE'S A LOT OF 

2356
01:43:43,955 --> 01:43:44,689
GROUND TO COVER THERE.

2357
01:43:44,689 --> 01:43:48,160
WE DID PUT OUT A SUMMARY FROM 

2358
01:43:48,160 --> 01:43:49,394
THE HOUSING WORKING GROUP AND IN

2359
01:43:49,394 --> 01:43:51,830
THE FUTURE THE COMMITTEE COULD 

2360
01:43:51,830 --> 01:43:53,498
ALWAYS COME BACK TO THAT MORE IN

2361
01:43:53,498 --> 01:43:57,369
DEPTH IF NEEDED.

2362
01:43:57,369 --> 01:43:59,504
>> WHEN WE TALK ABOUT THE 

2363
01:43:59,504 --> 01:44:01,940
IMPLICATIONS OF THE TRAUMA OF 

2364
01:44:01,940 --> 01:44:02,908
POVERTY AND BEING UNHOUSED 

2365
01:44:02,908 --> 01:44:03,542
THERE'S WAYS TO GET ELEMENTS IN 

2366
01:44:03,542 --> 01:44:09,281
THERE.

2367
01:44:09,281 --> 01:44:11,516
MAYBE IN THE NEXT STRATEGIC 

2368
01:44:11,516 --> 01:44:15,153
PLAN.

2369
01:44:15,153 --> 01:44:25,664
>> IT INCLUDES YOUR
FEEDBACK.

2370
01:44:31,303 --> 01:44:33,071
I WAS HAVING PROBLEMS EARLIER 

2371
01:44:33,071 --> 01:44:34,272
TOO.

2372
01:44:34,272 --> 01:44:35,373
THIS IS OUR FIRST HYBRID MEETING

2373
01:44:35,373 --> 01:44:37,676
SO WE'RE TESTING OUT THINGS.

2374
01:44:37,676 --> 01:44:39,945
JUST TO INCLUDE ALL OF THAT ON 

2375
01:44:39,945 --> 01:44:41,279
YOUR FORMS AND WHILE WE'RE 

2376
01:44:41,279 --> 01:44:43,381
WORKING WITH DR. TAYLOR TO MAKE 

2377
01:44:43,381 --> 01:44:46,284
THE INITIAL UPDATES WE WILL SEE 

2378
01:44:46,284 --> 01:44:48,820
WHAT SEEMS TO FIT IN THE FLOW OF

2379
01:44:48,820 --> 01:44:50,455
THE THEME OF THIS REPORT.

2380
01:44:50,455 --> 01:44:53,058
SO I WANTED TO GET YOUR FEEDBACK

2381
01:44:53,058 --> 01:44:55,560
ON WHETHER YOU'D LIKE US TO 

2382
01:44:55,560 --> 01:44:57,395
ISSUE AN RFI TO GET COMMUNITY 

2383
01:44:57,395 --> 01:45:02,133
INPUT ON THE TOPIC.

2384
01:45:02,133 --> 01:45:05,103
CAN I SEE HANDS IN FAVOR OF US 

2385
01:45:05,103 --> 01:45:07,038
DOING AN RFI TO GET INPUT FROM 

2386
01:45:07,038 --> 01:45:07,606
THE PUBLIC.

2387
01:45:07,606 --> 01:45:17,749
>> SUSAN, BEFORE WE VOTE
ON THAT

2388
01:45:17,749 --> 01:45:24,990
I BELIEVE WE RAN A PROCESS PRIOR

2389
01:45:24,990 --> 01:45:29,494
TO THE -- AND IT MIGHT INFORM 

2390
01:45:29,494 --> 01:45:30,729
WHETHER WE WANT TO GET MORE 

2391
01:45:30,729 --> 01:45:31,897
INPUT NOW OR NOT.

2392
01:45:31,897 --> 01:45:34,599
>> SO THE INPUT FROM THE 

2393
01:45:34,599 --> 01:45:36,201
PREVIOUS RFI IS ALREADY IN THE 

2394
01:45:36,201 --> 01:45:36,935
DRAFT WE GOT.

2395
01:45:36,935 --> 01:45:39,971
THE PURPOSE OF DOING A SECOND R 

2396
01:45:39,971 --> 01:45:42,007
FIF WOULD TO BE GET ANYTHING 

2397
01:45:42,007 --> 01:45:43,775
THAT WOULD BE TO GET ANYTHING 

2398
01:45:43,775 --> 01:45:44,242
UPDATED.

2399
01:45:44,242 --> 01:45:47,379
HAS ANYTHING CHANGED IN TERMS OF

2400
01:45:47,379 --> 01:45:48,813
THEIR EXPERIENCES IN THE 

2401
01:45:48,813 --> 01:45:49,748
COMMUNITY OR MORE AWARENESS 

2402
01:45:49,748 --> 01:45:51,750
ABOUT THE TOPICS RELATED TO 

2403
01:45:51,750 --> 01:45:53,518
PHYSICAL AND MENTAL HEALTH IN 

2404
01:45:53,518 --> 01:45:54,886
LIGHT OF THE PANDEMIC WHICH IS 

2405
01:45:54,886 --> 01:45:56,922
NOT SOMETHING THAT HAPPENED BY 

2406
01:45:56,922 --> 01:45:57,689
2019.

2407
01:45:57,689 --> 01:45:58,723
IF WE THINK THERE'S ANYTHING NEW

2408
01:45:58,723 --> 01:46:01,293
FROM THE COMMUNITY THAT COULD BE

2409
01:46:01,293 --> 01:46:02,460
SHARED, WE'D COLLECT IT AND 

2410
01:46:02,460 --> 01:46:03,762
ANALYZE IT AND MAKE SURE IT 

2411
01:46:03,762 --> 01:46:04,963
MAKES A DIFFERENCE WITH THE 

2412
01:46:04,963 --> 01:46:07,165
STRATEGIC PLAN BUT THE PREVIOUS 

2413
01:46:07,165 --> 01:46:08,767
INPUT STARTING AT THE STRATEGIC 

2414
01:46:08,767 --> 01:46:09,234
PLAN REPORT.

2415
01:46:09,234 --> 01:46:11,603
WE DID INCORPORATE FEEDBACK FROM

2416
01:46:11,603 --> 01:46:14,239
THE PREVIOUS RFI IN THE REPORT 

2417
01:46:14,239 --> 01:46:14,472
ALREADY.

2418
01:46:14,472 --> 01:46:15,340
>> QUICK QUESTION.

2419
01:46:15,340 --> 01:46:18,043
WHAT WOULD BE THE TIME LINE ON 

2420
01:46:18,043 --> 01:46:18,376
THAT ?

2421
01:46:18,376 --> 01:46:21,112
YOU ISSUE AN RFI AND THEN -- YOU

2422
01:46:21,112 --> 01:46:24,282
KNOW, THE GENERAL TIME LINE?

2423
01:46:24,282 --> 01:46:25,250
.

2424
01:46:25,250 --> 01:46:30,322
>> WE COULD KEEP IT OPEN I
WOULD

2425
01:46:30,322 --> 01:46:32,791
SAY SIX TO EIGHT WEEKS.

2426
01:46:32,791 --> 01:46:35,527
I WOULD SAY EIGHT WEEKS TO 

2427
01:46:35,527 --> 01:46:37,262
PUBLICIZE IT AND MAKE SURE 

2428
01:46:37,262 --> 01:46:38,263
PEOPLE HEARD ABOUT IT AND 

2429
01:46:38,263 --> 01:46:38,630
COLLECT THAT.

2430
01:46:38,630 --> 01:46:40,398
OUR GOAL IS TO GET THAT INPUT 

2431
01:46:40,398 --> 01:46:42,634
BACK TO HOPEFULLY IN JANUARY SO 

2432
01:46:42,634 --> 01:46:43,969
YOU CAN SEE WHAT WE WOULD GIVE 

2433
01:46:43,969 --> 01:46:45,837
YOU AN ANALYSIS OF WHAT CAME 

2434
01:46:45,837 --> 01:46:47,539
BACK AND SHARE THE COMMENTS WITH

2435
01:46:47,539 --> 01:46:49,174
YOU AS WELL.

2436
01:46:49,174 --> 01:46:52,944
AND WE USUALLY DO POST THOSE UP 

2437
01:46:52,944 --> 01:46:58,450
ON THE WEBSITE.

2438
01:46:58,450 --> 01:47:00,151
>> WOULD YOU BE WILLING TO
DO 

2439
01:47:00,151 --> 01:47:02,821
THAT FOR THIS THAT WAY WE KNOW 

2440
01:47:02,821 --> 01:47:04,923
IT'S OPEN AND CAN SHARE IT IN 

2441
01:47:04,923 --> 01:47:05,824
OUR NETWORK?

2442
01:47:05,824 --> 01:47:07,692
THAT WOULD BE HELPFUL.

2443
01:47:07,692 --> 01:47:09,894
>> WE CAN CREATE THE
SOCIAL 

2444
01:47:09,894 --> 01:47:11,830
MEDIA GRAPHICS TO PUT IT ON YOUR

2445
01:47:11,830 --> 01:47:13,198
LINKEDIN OR WHATEVER YOU WANT TO

2446
01:47:13,198 --> 01:47:13,999
GET MORE INPUT.

2447
01:47:13,999 --> 01:47:15,367
>> THAT WOULD BE AMAZE.

2448
01:47:15,367 --> 01:47:16,935
>> WE CAN WORK ON THAT IF
YOU'RE

2449
01:47:16,935 --> 01:47:27,412
INTERESTED IN DOING AN RFI.

2450
01:47:35,887 --> 01:47:36,087
MORENIKE.

2451
01:47:36,087 --> 01:47:36,955
>> NOTHING'S IN THE CHAT.

2452
01:47:36,955 --> 01:47:45,463
>> ONE OF THE THINGS I
WOULD ADD

2453
01:47:45,463 --> 01:47:49,000
WHEN YOU MENTION COVID BASED ON 

2454
01:47:49,000 --> 01:47:51,569
PRELIMINARY STUDIES THAT 

2455
01:47:51,569 --> 01:47:53,538
AUTISTIC PEOPLE ARE MORE LIKELY 

2456
01:47:53,538 --> 01:47:56,107
TO HAVE MORE KINDS OF CONNECTIVE

2457
01:47:56,107 --> 01:48:00,945
TISSUE DISORDERS AND THOSE ARE 

2458
01:48:00,945 --> 01:48:04,916
ALSO LINKED TO CONDITIONS LIKE 

2459
01:48:04,916 --> 01:48:08,119
POSTURAL TACHYCARDIA SYNDROME, 

2460
01:48:08,119 --> 01:48:13,191
CHRONIC FATIGUE, IMMUNE 

2461
01:48:13,191 --> 01:48:16,294
ACTIVATION THAT ARE SEEN AMONG 

2462
01:48:16,294 --> 01:48:17,262
PEOPLE EXPERIENCING LONG COVID.

2463
01:48:17,262 --> 01:48:19,931
SO I THINK IT WOULD BE HELPFUL 

2464
01:48:19,931 --> 01:48:24,469
TO SEE IF THERE SAY FELT SENSE 

2465
01:48:24,469 --> 01:48:26,304
IN THE COMMUNITY THAT AUTISTIC 

2466
01:48:26,304 --> 01:48:28,573
PEOPLE ARE AT HIGH RISK FOR LONG

2467
01:48:28,573 --> 01:48:32,544
COVID OR OTHER NEGATIVE 

2468
01:48:32,544 --> 01:48:35,547
LONG-TERM OUTCOMES FROM COVID 

2469
01:48:35,547 --> 01:48:36,014
AND OTHER INFECTIONS.

2470
01:48:36,014 --> 01:48:38,783
>> THANK YOU, SAM.

2471
01:48:38,783 --> 01:48:42,654
WE CERTAINLY IN DOING AN RFI WE 

2472
01:48:42,654 --> 01:48:44,222
NORMALLY HAVE ONE OR MORE 

2473
01:48:44,222 --> 01:48:46,024
QUESTIONS THAT WE PUT INTO THE 

2474
01:48:46,024 --> 01:48:49,360
RFI SO WE COULD HAVE ONE THAT'S 

2475
01:48:49,360 --> 01:48:50,328
TARGETED TOWARDS COVID AND INPUT

2476
01:48:50,328 --> 01:48:52,597
THAT MAY BE RELATED TO THAT AND 

2477
01:48:52,597 --> 01:48:56,601
WE HAVE NOT COLLECTED THAT IN A 

2478
01:48:56,601 --> 01:48:57,035
TARGETED WAY BEFORE.

2479
01:48:57,035 --> 01:49:02,607
ANY OTHER COMMENTS?

2480
01:49:02,607 --> 01:49:02,874
DENA.

2481
01:49:02,874 --> 01:49:06,010
>> I'M WONDERING AND
FORGIVE ME 

2482
01:49:06,010 --> 01:49:08,413
IF THIS IS NOT THE SPACE OR 

2483
01:49:08,413 --> 01:49:09,547
APPROPRIATE PLACE FOR THIS, BUT 

2484
01:49:09,547 --> 01:49:12,350
WHEN WE LOOK AT CO-OCCURRING 

2485
01:49:12,350 --> 01:49:14,519
TRAUMA I'M WONDER IF WE NEED TO 

2486
01:49:14,519 --> 01:49:19,357
MAKE CONTRIBUTION IN REGARD TO 

2487
01:49:19,357 --> 01:49:21,493
PRIMARY AND SECONDARY 

2488
01:49:21,493 --> 01:49:23,194
WAR-RELATED TRAUMA AS IT AFFECTS

2489
01:49:23,194 --> 01:49:25,563
PEOPLE WITH INTELLECTUAL AND 

2490
01:49:25,563 --> 01:49:26,831
DEVELOPMENTAL CONDITIONS.

2491
01:49:26,831 --> 01:49:28,933
I CAN'T IMAGINE TO WHAT'S 

2492
01:49:28,933 --> 01:49:34,139
HAPPENING TO PEOPLE 

2493
01:49:34,139 --> 01:49:39,010
INSTITUTIONALIZED IN UKRAINE OR 

2494
01:49:39,010 --> 01:49:43,148
SO MANY FRIENDS WITH CONNECTIONS

2495
01:49:43,148 --> 01:49:46,618
TO ISRAEL OR PALESTINE ARE 

2496
01:49:46,618 --> 01:49:47,385
EXPERIENCING SECONDARY TRAUMA 

2497
01:49:47,385 --> 01:49:50,989
AND I HEAR THEY'RE GOING TO BE 

2498
01:49:50,989 --> 01:49:53,992
START POST THESE HORRIFIC THINGS

2499
01:49:53,992 --> 01:49:55,827
ON INSTAGRAM THAT CAN LEAD TO 

2500
01:49:55,827 --> 01:49:56,895
OTHER KINDS OF TRAUMA.

2501
01:49:56,895 --> 01:49:58,997
I APOLOGIZE IF IT'S NOT 

2502
01:49:58,997 --> 01:50:00,131
APPROPRIATE OR DOESN'T FIT HERE 

2503
01:50:00,131 --> 01:50:00,932
BUT THAT'S JUST BEEN ON MY MIND 

2504
01:50:00,932 --> 01:50:06,304
FOR A WHILE.

2505
01:50:06,304 --> 01:50:09,507
>> IF WE HAVE IT ON THE
LIST TO 

2506
01:50:09,507 --> 01:50:11,209
ITEMS TO WEAVE IN WE'D LOOK AT 

2507
01:50:11,209 --> 01:50:12,510
THE LITERATURE TO SEE IF NEW 

2508
01:50:12,510 --> 01:50:16,648
RESEARCH HAS BEEN PUBLISHED ON 

2509
01:50:16,648 --> 01:50:18,583
THIS AND LOOKING TO COMMUNITY 

2510
01:50:18,583 --> 01:50:19,918
INPUT WE'RE RECEIVING AND HOW WE

2511
01:50:19,918 --> 01:50:21,452
GET SOME UPDATES.

2512
01:50:21,452 --> 01:50:23,655
ANOTHER ITEM OUR TEAM NOTICED IN

2513
01:50:23,655 --> 01:50:26,524
LOOKING BEEN AT SOMETHING 

2514
01:50:26,524 --> 01:50:27,825
WRITTEN IN 2019 IS THE COMMITTEE

2515
01:50:27,825 --> 01:50:31,029
MADE A STRONG SHIFT IN TERMS OF 

2516
01:50:31,029 --> 01:50:35,533
EQUITY, DIVERSITY, INCLUSION AND

2517
01:50:35,533 --> 01:50:35,867
ACCESSIBILITY.

2518
01:50:35,867 --> 01:50:38,102
WE WOULD IMAGINE YOU MIGHT WANT 

2519
01:50:38,102 --> 01:50:39,971
TO HAVE A LITTLE BIT MORE OF AN 

2520
01:50:39,971 --> 01:50:41,539
EQUITY LENS ON THIS REPORT THAN 

2521
01:50:41,539 --> 01:50:42,640
WAS CREATED IN THE PREVIOUS 

2522
01:50:42,640 --> 01:50:43,474
VERSION OF IT.

2523
01:50:43,474 --> 01:50:48,580
SO THAT'S SOMETHING THAT WE'VE 

2524
01:50:48,580 --> 01:50:57,222
ALREADY IN THESSED ME WAY WANT 

2525
01:50:57,222 --> 01:51:01,793
TO ADD TO MAKE IT MORE COMPLETE.

2526
01:51:01,793 --> 01:51:03,928
ANY OTHER QUESTIONS BEFORE WE 

2527
01:51:03,928 --> 01:51:04,729
GET YOUR TEMPERATURE READ 

2528
01:51:04,729 --> 01:51:05,697
WHETHER OR NOT WE SHOULD GET AN 

2529
01:51:05,697 --> 01:51:13,238
RFI?

2530
01:51:13,238 --> 01:51:15,006
>> CAN I GET HANDS RAISED
ON HOW

2531
01:51:15,006 --> 01:51:16,541
MANY ARE INTERESTED IN DOING AN 

2532
01:51:16,541 --> 01:51:18,476
RFI TO GATHER PUBLIC INPUT ON 

2533
01:51:18,476 --> 01:51:28,987
ISSUES RELATED TO THE UPDATE?

2534
01:51:29,554 --> 01:51:30,288
ALL IN FAVOR.

2535
01:51:30,288 --> 01:51:38,896
?

2536
01:51:38,896 --> 01:51:40,865
 

2537
01:51:41,599 --> 01:51:43,368
EVERYONE IN FAVOR HAS THEIR 

2538
01:51:43,368 --> 01:51:44,002
HANDS RAISED.

2539
01:51:44,002 --> 01:51:46,204
LET ME KNOW WHEN YOUR GOOD.

2540
01:51:46,204 --> 01:51:48,873
SO ANYONE OPPOSED TO DOING AN 

2541
01:51:48,873 --> 01:51:52,944
RFI DOES NOT WANT TO RECEIVE 

2542
01:51:52,944 --> 01:51:58,283
COMMUNITY INPUT AT THIS TIME?

2543
01:51:58,283 --> 01:51:59,250
ANYONE ABSTAINING?

2544
01:51:59,250 --> 01:52:02,854
LOOKS LIKE YOU VOTED TO HAVE AN 

2545
01:52:02,854 --> 01:52:03,621
RFI.

2546
01:52:03,621 --> 01:52:05,990
WE'LL WORK ON DEVELOPING AN RFI 

2547
01:52:05,990 --> 01:52:07,392
ALSO TAKING INTO CONSIDERATION 

2548
01:52:07,392 --> 01:52:09,594
SOME OF THE THINGS YOU SAID HERE

2549
01:52:09,594 --> 01:52:10,962
THAT WOULD GATHER BROAD PUBLIC 

2550
01:52:10,962 --> 01:52:13,965
FEEDBACK FOR THIS SO WE CAN MAKE

2551
01:52:13,965 --> 01:52:15,233
SURE THAT OUR REPORT IS 

2552
01:52:15,233 --> 01:52:16,934
COMPLETELY UP TO DATE WITH THE 

2553
01:52:16,934 --> 01:52:18,403
LATEST ISSUES THAT THE COMMUNITY

2554
01:52:18,403 --> 01:52:28,880
IS FACING AND INTERESTED IN.

2555
01:52:34,786 --> 01:52:37,121
I MENTIONED WE'D LIKE TO A 

2556
01:52:37,121 --> 01:52:38,823
SURVEY WITH THE COMMITTEE BUT TO

2557
01:52:38,823 --> 01:52:45,863
GET YOUR CONSENT ARE YOU WILLING

2558
01:52:45,863 --> 01:52:48,099
TO FILL OUT A SURVEY ON WHAT 

2559
01:52:48,099 --> 01:52:49,467
YOU'D LIKE TO SEE IN THE REPORT?

2560
01:52:49,467 --> 01:52:51,803
HANDS UP FOR ANYONE WHO IS IN 

2561
01:52:51,803 --> 01:52:52,937
FAVOR OF RECEIVING AND 

2562
01:52:52,937 --> 01:53:03,348
RESPONDING TO A SURVEY.

2563
01:53:20,531 --> 01:53:21,733
SOUNDS LIKE YOU'RE IN FAVOR AND 

2564
01:53:21,733 --> 01:53:28,940
IT WAS AN EFFECTIVE WAY TO GET 

2565
01:53:28,940 --> 01:53:30,608
YOUR SPECIFIC REFERENCES OR 

2566
01:53:30,608 --> 01:53:31,242
WORDS THAT YOU SHARED TO HELP 

2567
01:53:31,242 --> 01:53:34,946
UPDATE THE PLAN.

2568
01:53:34,946 --> 01:53:45,423
WE HAVE A DECISION ON THAT.

2569
01:53:45,923 --> 01:53:48,793
SO WE'LL BE WORKING TO CONTINUE 

2570
01:53:48,793 --> 01:53:50,128
THE CO-OCCURRING CONDITIONS 

2571
01:53:50,128 --> 01:53:51,729
REPORT AND FORM IT INTO THE 

2572
01:53:51,729 --> 01:53:53,297
STRATEGIC PLAN UPDATE FOR 2024.

2573
01:53:53,297 --> 01:53:54,198
WE'LL PROVIDE YOU WITH THE 

2574
01:53:54,198 --> 01:53:56,467
STATUS UPDATE IN JANUARY AND 

2575
01:53:56,467 --> 01:53:58,736
YOU'LL BE HEARING FROM US AND 

2576
01:53:58,736 --> 01:54:00,605
YOU'LL SEE SOME OF THE ITEMS 

2577
01:54:00,605 --> 01:54:02,507
COMING OUT AND THANK YOU FOR 

2578
01:54:02,507 --> 01:54:03,541
SHARING YOU WANT SOCIAL MEDIA 

2579
01:54:03,541 --> 01:54:06,210
GRAPHICS AND OTHER THINGS TO 

2580
01:54:06,210 --> 01:54:07,812
HELP US PUBLICIZE THIS ACROSS 

2581
01:54:07,812 --> 01:54:08,913
THE COMMUNITY.

2582
01:54:08,913 --> 01:54:10,715
WE'LL WORK TO COMPLETE ALL 

2583
01:54:10,715 --> 01:54:13,451
RECORDS BY SEPTEMBER 30, 2024 

2584
01:54:13,451 --> 01:54:15,686
WITH THE OPPORTUNITY WE ARE 

2585
01:54:15,686 --> 01:54:17,822
ALLOWED TO DO A BRIEF COMMITTEE 

2586
01:54:17,822 --> 01:54:20,558
EXTENSION JUST TO COMPLETE PRIOR

2587
01:54:20,558 --> 01:54:22,059
BUSINESS AND SO IF WE NEED TO TO

2588
01:54:22,059 --> 01:54:23,661
GET YOUR INPUT ON A FEW THINGS 

2589
01:54:23,661 --> 01:54:26,097
TO FINISH UP YOUR WORK WE WILL 

2590
01:54:26,097 --> 01:54:28,933
ALSO DO THAT BUT I WILL UPDATE 

2591
01:54:28,933 --> 01:54:39,343
YOU BACK ON THAT LATER.

2592
01:55:04,302 --> 01:55:05,970
SO GIVEN WE'RE A LITTLE BIT 

2593
01:55:05,970 --> 01:55:07,071
BEHIND SCHEDULE WE'RE GOING TO 

2594
01:55:07,071 --> 01:55:08,072
ASK OF THE COMMITTEE IF WE CAN 

2595
01:55:08,072 --> 01:55:10,741
COME BACK TO THE SUMMARY OF 

2596
01:55:10,741 --> 01:55:12,276
ADVANCES NOMINATIONS AT ANOTHER 

2597
01:55:12,276 --> 01:55:14,679
TIME AT THE JANUARY MEETING 

2598
01:55:14,679 --> 01:55:15,346
BECAUSE WE'RE BEHIND SCHEDULE 

2599
01:55:15,346 --> 01:55:16,614
AND WANT TO MAKE SURE YOU HAVE 

2600
01:55:16,614 --> 01:55:17,815
ENOUGH TIME FOR LUNCH.

2601
01:55:17,815 --> 01:55:22,653
YOU HAVE RESOURCE D -- RECEIVED 

2602
01:55:22,653 --> 01:55:24,755
THOSE NOMINATIONS IN YOUR 

2603
01:55:24,755 --> 01:55:27,291
PACKETS AND IF YOU HAVE FEEDBACK

2604
01:55:27,291 --> 01:55:28,292
WE WELCOME TO YOU SUBMIT WRITTEN

2605
01:55:28,292 --> 01:55:29,093
FEEDBACK IF THERE'S SOMETHING ON

2606
01:55:29,093 --> 01:55:31,629
THE LIST OR SOMETHING YOU FEEL 

2607
01:55:31,629 --> 01:55:32,930
IS NOT MAYBE MEETING THE 

2608
01:55:32,930 --> 01:55:34,465
STANDARD WE WOULD WANT FOR A 

2609
01:55:34,465 --> 01:55:35,566
NOMINATION FOR THE SUMMARY OF 

2610
01:55:35,566 --> 01:55:37,935
ADVANCES BUT WE CAN DO A MORE 

2611
01:55:37,935 --> 01:55:40,938
EXTENSIVE DISCUSSION OF THIS IN 

2612
01:55:40,938 --> 01:55:41,372
JANUARY TO CATCH UP.

2613
01:55:41,372 --> 01:55:46,544
SO WE WILL DO THAT AND NOW WE 

2614
01:55:46,544 --> 01:55:48,913
WILL MOVE TO OUR NEXT ITEM OF 

2615
01:55:48,913 --> 01:55:52,683
BUSINESS WHICH IS SPOTLIGHT ON 

2616
01:55:52,683 --> 01:55:56,254
SUNFLOWER BEAKRY A LOCAL 

2617
01:55:56,254 --> 01:55:56,988
BUSINESS THAT SUPPORTS 

2618
01:55:56,988 --> 01:55:59,223
INDIVIDUALS WITH DISABILITIES 

2619
01:55:59,223 --> 01:56:00,658
AND THEY'RE PROVIDING BOXED 

2620
01:56:00,658 --> 01:56:02,159
LUNCHES FOR CERTAIN MEMBERS OF 

2621
01:56:02,159 --> 01:56:03,361
THE COMMITTEE THAT ORDER FROM 

2622
01:56:03,361 --> 01:56:04,362
THEM BUT WANTED TO HIGHLIGHT 

2623
01:56:04,362 --> 01:56:05,596
THEIR ORGANIZATION AND THE WORK 

2624
01:56:05,596 --> 01:56:08,699
THEY'RE DOING IN OUR COMMUNITY 

2625
01:56:08,699 --> 01:56:11,335
FOR INDIVIDUALS WITH ZABLTH 

2626
01:56:14,305 --> 01:56:14,906
FOR INDIVIDUALS WITH 

2627
01:56:14,906 --> 01:56:15,406
DISABILITIES.

2628
01:56:15,406 --> 01:56:17,275
I'D LIKE TO INTRODUCE JOHN KATZ.

2629
01:56:17,275 --> 01:56:21,078
WOULD YOU LIKE TO GO UP TO THE 

2630
01:56:21,078 --> 01:56:31,222
PODIUM?

2631
01:56:34,892 --> 01:56:39,530
>> THE, DR. D -- THANK
YOU, 

2632
01:56:39,530 --> 01:56:39,830
DR. DANIELS.

2633
01:56:39,830 --> 01:56:41,566
IT'S AN HONOR TO SHOWCASE WHAT 

2634
01:56:41,566 --> 01:56:43,134
SOME OF OUR STUDENTS ARE ABLE TO

2635
01:56:43,134 --> 01:56:46,470
DO AND REALLY REIMAGINING WHAT 

2636
01:56:46,470 --> 01:56:47,905
PEOPLE WITH LEARNING DIFFERENCES

2637
01:56:47,905 --> 01:56:50,675
SPECIFICALLY AUTISM CAN DO IN 

2638
01:56:50,675 --> 01:56:51,676
THE WORKPLACE.

2639
01:56:51,676 --> 01:56:54,378
SUNFLOWER BAKERY WAS CREATED OR 

2640
01:56:54,378 --> 01:56:55,947
FOUNDED 11 YEARS AGO.

2641
01:56:55,947 --> 01:56:58,149
IT HAS TAKEN EVERY BIT OF 11 

2642
01:56:58,149 --> 01:57:00,851
YEARS TO WORK THROUGH WHERE WE 

2643
01:57:00,851 --> 01:57:02,787
ARE NOW BUT WE'RE ON THE VERGE 

2644
01:57:02,787 --> 01:57:04,922
OF BEING ONE OF THE LARGEST 

2645
01:57:04,922 --> 01:57:06,691
WORKFORCE DEVELOPMENT FOR 

2646
01:57:06,691 --> 01:57:07,191
SPECIFICALLY LEARNING 

2647
01:57:07,191 --> 01:57:09,627
DISABILITIES IN MARYLAND.

2648
01:57:09,627 --> 01:57:13,431
WE HAVE A 70% EMPLOYMENT RATE 

2649
01:57:13,431 --> 01:57:14,465
AFTER COMPLETION OF OUR PROGRAM 

2650
01:57:14,465 --> 01:57:17,368
AND THE WAY WE DO THIS IS 

2651
01:57:17,368 --> 01:57:18,536
SHOWCASING WHAT OUR STUDENTS CAN

2652
01:57:18,536 --> 01:57:20,271
DO NOT WHAT THEY CAN'T DO.

2653
01:57:20,271 --> 01:57:23,374
WE WORK WITH EMPLOYERS TO LET 

2654
01:57:23,374 --> 01:57:26,110
OUR STUDENTS KNOW NOT ONLY THAT 

2655
01:57:26,110 --> 01:57:28,512
THEY ARE NEEDED BUT THEY CAN DO 

2656
01:57:28,512 --> 01:57:31,015
THE WORK RIGHT ALONG SIDE IF NOT

2657
01:57:31,015 --> 01:57:32,149
BETTER THAN MOST NEUROTYPICAL 

2658
01:57:32,149 --> 01:57:36,520
YOUNG ADULTS.

2659
01:57:36,520 --> 01:57:38,055
WE GIVE OUR STUDENTS A 

2660
01:57:38,055 --> 01:57:38,956
FOUNDATION IN LEARNING AND 

2661
01:57:38,956 --> 01:57:44,061
GROWTH AND WE TEACH NOT ONLY THE

2662
01:57:44,061 --> 01:57:47,365
SKILLS ASSOCIATED WITH BAKING 

2663
01:57:47,365 --> 01:57:51,636
AND HOSPITALITY AND THE SOFT 

2664
01:57:51,636 --> 01:57:52,903
SKILLS THAT IS WHAT EVERYONE 

2665
01:57:52,903 --> 01:57:53,771
NEEDS BEFORE GOING INTO WORK.

2666
01:57:53,771 --> 01:58:01,412
WE ARE UP EQ IN -- WE ARE UNIQUE

2667
01:58:01,412 --> 01:58:04,915
IN THAT I WENT TO CULINARY 

2668
01:58:04,915 --> 01:58:08,519
SCHOOL AND I WOULD LIKE OUR 

2669
01:58:08,519 --> 01:58:12,723
SKILLS THAN WHAT CULINARY SCHOOL

2670
01:58:12,723 --> 01:58:17,561
AND IT'S MORE BUILDING ON 

2671
01:58:17,561 --> 01:58:22,033
FOUNDATION AND THAT JUST 

2672
01:58:22,033 --> 01:58:23,901
THEORIES.

2673
01:58:23,901 --> 01:58:25,603
WE'LL LET YOU WATCH THE VIDEO 

2674
01:58:25,603 --> 01:58:32,910
AND SEE OUR WORK IF THAT'S OKAY.

2675
01:58:32,910 --> 01:58:34,345
I APPRECIATE IT AND HOPE ANYBODY

2676
01:58:34,345 --> 01:58:37,715
WHO GOT A LUNCH, ENJOYS IT AND 

2677
01:58:37,715 --> 01:58:40,217
WE'RE EXCITE AND READY TO SHOW 

2678
01:58:40,217 --> 01:58:48,225
OFF OUR BAKERY BUT PLEASE ENJOY.

2679
01:58:48,225 --> 01:58:50,995
>> WE WANT TO GET PEOPLE
READY 

2680
01:58:50,995 --> 01:58:54,065
TO WORK AND SHOW UP ON TIME AND 

2681
01:58:54,065 --> 01:58:54,999
BE ACCOUNTABLE AND TAKE 

2682
01:58:54,999 --> 01:58:56,233
RESPONSIBILITY FOR THEIR 

2683
01:58:56,233 --> 01:58:57,835
PRODUCTION LIST AND HOW TO 

2684
01:58:57,835 --> 01:58:58,836
COMMUNICATE WITH THEIR 

2685
01:58:58,836 --> 01:59:00,471
CO-WORKERS AND PEERS.

2686
01:59:00,471 --> 01:59:08,679
>> OUR GRADUATES HAVE
WORKED 

2687
01:59:08,679 --> 01:59:16,821
HARD FOR THE SOFT SKILLS FOR 

2688
01:59:16,821 --> 01:59:18,322
EMPLOYMENT.

2689
01:59:18,322 --> 01:59:20,124
>> IT'S BEEN AN INCREDIBLE

2690
01:59:20,124 --> 01:59:21,492
EXPERIENCE WORKING WITH NOT ONLY

2691
01:59:21,492 --> 01:59:22,626
SUNFLOWER AND ADMINISTRATORS AND

2692
01:59:22,626 --> 01:59:28,065
DIRECTORS AND THE STUDENTS 

2693
01:59:28,065 --> 01:59:31,635
THEMSELVES.

2694
01:59:31,635 --> 01:59:34,905
PEOPLE LIKE ME FEEL IMPORTANT 

2695
01:59:34,905 --> 01:59:36,307
BECAUSE CAN'T WORK WITH THE 

2696
01:59:36,307 --> 01:59:37,942
DISABILITY I HAVE AND WE FEEL 

2697
01:59:37,942 --> 01:59:39,410
IMPORTANT BECAUSE WE FEEL LIKE 

2698
01:59:39,410 --> 01:59:42,379
THEY CARE ABOUT US AND OUR 

2699
01:59:42,379 --> 01:59:42,646
CAREERS.

2700
01:59:42,646 --> 01:59:44,915
>> AS A PARENT I WAS
INVOLVED 

2701
01:59:44,915 --> 01:59:47,384
FROM THE BEGINNING AND ABLE TO 

2702
01:59:47,384 --> 01:59:49,720
GO TO MEETINGS AND UNDERSTAND 

2703
01:59:49,720 --> 01:59:53,457
WHAT THEY'RE TRYING TO BUILD 

2704
01:59:53,457 --> 01:59:54,658
WITH JULIA AND WENT THROUGH THE 

2705
01:59:54,658 --> 01:59:56,861
PROCESS OF MAKING JULIA A MEMBER

2706
01:59:56,861 --> 01:59:59,563
OF SOCIETY AND HOLD A JOB AND 

2707
01:59:59,563 --> 02:00:02,433
HAVE THE SKILLS AND AS A PARENT 

2708
02:00:02,433 --> 02:00:03,267
THERE'S NOTHING LIKE SEEING YOUR

2709
02:00:03,267 --> 02:00:05,436
CHILD SUCCEED IN THINGS I NEVER 

2710
02:00:05,436 --> 02:00:15,946
THOUGHT WERE POSSIBLE FOR HER.

2711
02:00:25,556 --> 02:00:25,923
>> THANK YOU.

2712
02:00:25,923 --> 02:00:27,825
IT LOOKS LIKE WE HAVE A 

2713
02:00:27,825 --> 02:00:28,092
QUESTION.

2714
02:00:28,092 --> 02:00:29,860
>> I JUST WANT TO COMMEND
ON 

2715
02:00:29,860 --> 02:00:31,495
WHAT YOU'RE DOING.

2716
02:00:31,495 --> 02:00:33,364
I'M SEEING A RISE IN THIS AND 

2717
02:00:33,364 --> 02:00:35,566
MORE BUSINESSES STARTING IT DO 

2718
02:00:35,566 --> 02:00:37,835
THIS.

2719
02:00:37,835 --> 02:00:40,004
WE HAVE A RESOURCE AND JOB FAIRE

2720
02:00:40,004 --> 02:00:42,640
EVERY YEAR AND THEY COME IN AND 

2721
02:00:42,640 --> 02:00:44,942
SERVE ALL THE COFFEE AND IT'S A 

2722
02:00:44,942 --> 02:00:47,545
HUGE IMPACT ON PARENTS SEEING 

2723
02:00:47,545 --> 02:00:48,112
THE POSSIBILITIES.

2724
02:00:48,112 --> 02:00:52,817
MY SON LAST YEAR GOT HIS FIRST 

2725
02:00:52,817 --> 02:00:54,318
JOB AND GOT A RAISE AND 

2726
02:00:54,318 --> 02:00:56,554
PROMOTION AT ONE YEAR AND I 

2727
02:00:56,554 --> 02:00:59,490
CAN'T TELL YOU FOR A MOM AND DAD

2728
02:00:59,490 --> 02:01:03,093
HOW HUGE THAT IS IN OUR LIVES.

2729
02:01:03,093 --> 02:01:04,461
WE COMMEND YOU ON THE WORK 

2730
02:01:04,461 --> 02:01:04,795
YOU'RE DOING.

2731
02:01:04,795 --> 02:01:05,996
THIS IS AMAZING WORK.

2732
02:01:05,996 --> 02:01:06,397
THANK YOU.

2733
02:01:06,397 --> 02:01:12,469
>> I'D LIKE TO THANK YOU
ALL FOR

2734
02:01:12,469 --> 02:01:16,340
LEADING THE CHARGE AND 

2735
02:01:16,340 --> 02:01:17,441
UNDERSTANDING AND DEVELOPMENT 

2736
02:01:17,441 --> 02:01:19,210
AND WE DON'T EXIST WITHOUT 

2737
02:01:19,210 --> 02:01:19,910
ORGANIZATIONS LIKE THIS LAYING 

2738
02:01:19,910 --> 02:01:21,512
THE GROUND WORK SO WE APPRECIATE

2739
02:01:21,512 --> 02:01:22,413
YOU AND ALL YOU DID.

2740
02:01:22,413 --> 02:01:25,349
>> WE HAVE A COUPLE MORE 

2741
02:01:25,349 --> 02:01:26,817
QUESTIONS OR COMMENTS FROM THE 

2742
02:01:26,817 --> 02:01:29,420
COMMITTEE.

2743
02:01:29,420 --> 02:01:29,653
IVANOVA.

2744
02:01:29,653 --> 02:01:35,559
>> I'M IVANOVA SMITH.

2745
02:01:35,559 --> 02:01:39,430
MY QUESTION IS WHAT WORK ARE YOU

2746
02:01:39,430 --> 02:01:43,100
DOING TO HELP THE PEOPLE YOU 

2747
02:01:43,100 --> 02:01:44,935
SERVE AND EMPLOYEE BECOME 

2748
02:01:44,935 --> 02:01:51,909
MANAGERS IN YOUR COMPANY AND 

2749
02:01:51,909 --> 02:01:54,612
BECOME ABLE TO TAKE ON A 

2750
02:01:54,612 --> 02:01:55,746
LEADERSHIP ROLE WITHIN THE 

2751
02:01:55,746 --> 02:01:56,146
COMPANY AS WELL.

2752
02:01:56,146 --> 02:01:57,748
IS THERE ANY EFFORTS IN THAT?

2753
02:01:57,748 --> 02:01:59,550
>> WE PROVIDE THE TRAINING
AND 

2754
02:01:59,550 --> 02:02:02,953
JOB SERVICES FOR YOUNG ADULTS 

2755
02:02:02,953 --> 02:02:04,755
WITH LEARNING DIFFERENCES.

2756
02:02:04,755 --> 02:02:07,925
THEN WE HAVE 60 DIFFERENT 

2757
02:02:07,925 --> 02:02:09,093
EMPLOYEE PARTNERS WITHIN THE 

2758
02:02:09,093 --> 02:02:14,298
D.C. METROPOLITAN AREA WE WORK 

2759
02:02:14,298 --> 02:02:22,973
WITH AND WE ENSURE THEY HAVE 

2760
02:02:22,973 --> 02:02:25,342
EQUAL OPPORTUNITY FOR GROWTH AND

2761
02:02:25,342 --> 02:02:27,244
WE WORK WITH STUDENTS FOR THREE 

2762
02:02:27,244 --> 02:02:28,312
YEARS TO ENSURE GROWTH PROMOTION

2763
02:02:28,312 --> 02:02:31,148
AND PROMOTION AND GROWTH I WANT 

2764
02:02:31,148 --> 02:02:32,082
EVERYBODY TO THINK OF COMES IN A

2765
02:02:32,082 --> 02:02:33,317
NUMBER OF WAYS.

2766
02:02:33,317 --> 02:02:39,056
IT'S NOT ALWAYS IN ROLES AND 

2767
02:02:39,056 --> 02:02:39,757
RESPONSIBILITIES BUT SOMETIMES 

2768
02:02:39,757 --> 02:02:41,425
FAIR AND EQUITABLE PAY, 

2769
02:02:41,425 --> 02:02:43,627
ADVANTAGES, BENEFITS AND HOURS 

2770
02:02:43,627 --> 02:02:43,861
WORKED.

2771
02:02:43,861 --> 02:02:45,262
A LOT OF OUR STUDENTS START AT 

2772
02:02:45,262 --> 02:02:48,933
PART-TIME AND THEN END UP 

2773
02:02:48,933 --> 02:02:51,435
TRANSITIONING TO FULL-TIME.

2774
02:02:51,435 --> 02:02:52,937
WE CONTINUOUSLY TRACK OUR 

2775
02:02:52,937 --> 02:02:56,407
STUDENTS FOR THREE YEARS AFTER 

2776
02:02:56,407 --> 02:02:57,508
THE STATE FUNDING ENDS.

2777
02:02:57,508 --> 02:03:01,478
WE DO THAT ALL FOR FREE.

2778
02:03:01,478 --> 02:03:04,048
AND WE SELL OUR PRODUCTS TO 

2779
02:03:04,048 --> 02:03:05,582
COVER THAT BUT IT'S REALLY 

2780
02:03:05,582 --> 02:03:09,353
GETTING THEM INVOLVED IN THEIR 

2781
02:03:09,353 --> 02:03:11,488
COMMUNITY BECAUSE WE HAVE TWO 

2782
02:03:11,488 --> 02:03:12,456
LITTLE SHOP IN ROCKVILLE.

2783
02:03:12,456 --> 02:03:14,291
I'D LOVE TO HAVE MORE AND 

2784
02:03:14,291 --> 02:03:16,694
HOPEFULLY IN THE FUTURE WE WILL 

2785
02:03:16,694 --> 02:03:18,796
BUT IT'S NOT FEASIBLE FOR 

2786
02:03:18,796 --> 02:03:19,730
EVERYBODY TO TRAVEL TO ROCKVILLE

2787
02:03:19,730 --> 02:03:23,534
TO COME TO US SO WE WORK WHERE 

2788
02:03:23,534 --> 02:03:28,238
THEY ARE AND OUR PLAN IS TO 

2789
02:03:28,238 --> 02:03:28,939
DEVELOP EMPLOYMENT PLANS TO 

2790
02:03:28,939 --> 02:03:31,008
DEVELOP WHAT THEY'RE GOALS ARE 

2791
02:03:31,008 --> 02:03:35,579
AND A 30-MINUTE COMMUTE DOOR TO 

2792
02:03:35,579 --> 02:03:39,950
DOOR TO FIND A JOB.

2793
02:03:39,950 --> 02:03:44,355
>> ONE PERSON STATED EARLY
ON 

2794
02:03:44,355 --> 02:03:46,423
WHEN THERE WAS A PRODUCT WITH 

2795
02:03:46,423 --> 02:03:48,092
INDIVIDUALS WITH DISABILITIES 

2796
02:03:48,092 --> 02:03:49,393
PEOPLE WILL OFTEN PURCHASE THE 

2797
02:03:49,393 --> 02:03:52,429
FIRST TIME FOR SYMPATHY, MAYBE 

2798
02:03:52,429 --> 02:03:55,532
THE SECOND TIME BUT IF YOU'RE 

2799
02:03:55,532 --> 02:03:57,768
GOING TO HAVE A SUSTAINABLE 

2800
02:03:57,768 --> 02:03:58,802
BUSINESS YOU HAVE TO HAVE 

2801
02:03:58,802 --> 02:03:59,203
QUALITY.

2802
02:03:59,203 --> 02:04:00,637
THESE FOLKS ARE IN OUR COMMUNITY

2803
02:04:00,637 --> 02:04:02,706
AND HAVE QUALITY AND PROVIDED 

2804
02:04:02,706 --> 02:04:04,708
THINGS TO SO MANY DIFFERENT 

2805
02:04:04,708 --> 02:04:06,410
LOCATIONS AND I'VE TALKED TO 

2806
02:04:06,410 --> 02:04:09,680
PARENTS WHO ARE SO DELIGHTED TO 

2807
02:04:09,680 --> 02:04:11,081
SEE THE PROGRESS OF INDIVIDUALS.

2808
02:04:11,081 --> 02:04:13,117
I TALKED TO A COUPLE INDIVIDUALS

2809
02:04:13,117 --> 02:04:15,919
AND THIS IS THE REAL DEAL AND 

2810
02:04:15,919 --> 02:04:16,920
THEY'RE DOING A GREAT JOB.

2811
02:04:16,920 --> 02:04:17,354
THANK YOU.

2812
02:04:17,354 --> 02:04:19,690
>> I APPRECIATE THAT.

2813
02:04:19,690 --> 02:04:22,393
ALL OF OUR ORGANIZATIONAL 

2814
02:04:22,393 --> 02:04:24,928
MEMBERS ARE INSTRUCTORS AND 

2815
02:04:24,928 --> 02:04:25,896
TRAINED CHEFS FROM INDUSTRY 

2816
02:04:25,896 --> 02:04:29,366
INCLUDING MYSELF.

2817
02:04:29,366 --> 02:04:32,503
RIGHT NOW OUR BIGGEST PROBLEM IS

2818
02:04:32,503 --> 02:04:35,372
WE'VE TURNED DOWN WHOLE FOODS AS

2819
02:04:35,372 --> 02:04:38,776
A VENDOR AND CISCO AND 

2820
02:04:38,776 --> 02:04:40,377
U.S. FOODS BECAUSE OUR GOAL IS 

2821
02:04:40,377 --> 02:04:41,945
TO TRAIN THE STUDENTS NOT PUMP 

2822
02:04:41,945 --> 02:04:43,414
OUT A PRODUCT OVER AND OVER 

2823
02:04:43,414 --> 02:04:43,814
AGAIN.

2824
02:04:43,814 --> 02:04:46,884
IT'S TO GIVE THE STUDENTS THEIR 

2825
02:04:46,884 --> 02:04:47,751
EXPERIENCE AND GET THEM 

2826
02:04:47,751 --> 02:04:52,222
EMPLOYED.

2827
02:04:52,222 --> 02:04:53,624
I APPRECIATE YOU SAYING THAT WE 

2828
02:04:53,624 --> 02:04:56,794
THINK IT'S A REAL DEAL AND IF 

2829
02:04:56,794 --> 02:05:00,898
YOU HAVEN'T BEEN TO OUR CAFE OR 

2830
02:05:00,898 --> 02:05:03,267
BAKERY IT'S A REAL DEAL AND AS 

2831
02:05:03,267 --> 02:05:05,235
LONG AS YOU SAY IACC YOU GET A 

2832
02:05:05,235 --> 02:05:07,838
FREE CUP OF COFFEE TODAY AND 20%

2833
02:05:07,838 --> 02:05:08,839
OFF ADDITIONAL PURCHASES.

2834
02:05:08,839 --> 02:05:10,741
ENJOY AND YOU'LL BE TAKEN CARE 

2835
02:05:10,741 --> 02:05:12,943
OF BY ONE OF OUR STUDENTS THAT 

2836
02:05:12,943 --> 02:05:21,018
IS GRADUATED AND PAYING WHILE WE

2837
02:05:21,018 --> 02:05:22,386
WORK TO FIND A JOB I APPRECIATE 

2838
02:05:22,386 --> 02:05:23,020
THE OPPORTUNITY AND THANK YOU 

2839
02:05:23,020 --> 02:05:24,788
FOR YOUR WORK.

2840
02:05:24,788 --> 02:05:27,057
>> WE HAVE ONE ANOTHER
COMMENT 

2841
02:05:27,057 --> 02:05:28,926
THE U.S. DEPARTMENT OF LABOR, 

2842
02:05:28,926 --> 02:05:30,360
SCOTT ROBERTSON.

2843
02:05:30,360 --> 02:05:35,566
>> THANKS, DR. DANIELS.

2844
02:05:35,566 --> 02:05:36,733
I WANT TO SAY THANK YOU FOR THE 

2845
02:05:36,733 --> 02:05:37,367
IMPORTANT WORK YOUR ORGANIZATION

2846
02:05:37,367 --> 02:05:41,605
IS DOING.

2847
02:05:41,605 --> 02:05:45,843
IF THERE'S ANYTHING WE HAVE AS 

2848
02:05:45,843 --> 02:05:47,344
FAR AS RESOURCE INFORMATION LET 

2849
02:05:47,344 --> 02:05:48,912
ME KNOW THAT MAY BE AVAILABLE TO

2850
02:05:48,912 --> 02:05:52,282
YOU FOR SERVICE PROVIDERS AND 

2851
02:05:52,282 --> 02:05:53,317
THE JOB SUPPORT.

2852
02:05:53,317 --> 02:05:55,719
MAYBE I CAN TOUCH BASE WITH YOU 

2853
02:05:55,719 --> 02:05:58,255
AFTER THE MEETING IF THERE'S ANY

2854
02:05:58,255 --> 02:06:00,991
RESOURCES FROM OUR TECHNICAL 

2855
02:06:00,991 --> 02:06:03,694
ASSISTANCE AND POLICY 

2856
02:06:03,694 --> 02:06:04,495
DEVELOPMENT CENTERS THAT MAY 

2857
02:06:04,495 --> 02:06:05,529
HELP SUPPORT YOUR WORK.

2858
02:06:05,529 --> 02:06:07,531
THANK YOU FOR THE WORK OF YOUR 

2859
02:06:07,531 --> 02:06:07,865
ORGANIZATION.

2860
02:06:07,865 --> 02:06:10,667
>> WE APPRECIATE THAT AND
HOPE 

2861
02:06:10,667 --> 02:06:13,904
DR. DANIELS AND HUR  -- HER TEAM

2862
02:06:13,904 --> 02:06:15,205
CAN GET US IN CONTACT.

2863
02:06:15,205 --> 02:06:18,909
>> THANK YOU, JOHN AND THE

2864
02:06:18,909 --> 02:06:20,010
ENTIRE SUNFLOWER TEAM FOR YOUR 

2865
02:06:20,010 --> 02:06:24,905
WORK AND FOR BEING WITH US
TODAY.

2866
02:06:24,905 --> 02:06:25,772
THANK YOU VERY MUCH.

2867
02:06:25,772 --> 02:06:30,977
THE NEXT SEGMENT IS TIME WE 

2868
02:06:30,977 --> 02:06:32,445
DEVOTE TO ORAL COMMENTS AND 

2869
02:06:32,445 --> 02:06:33,446
SUMMARY COMMENTS SUBMITTED 

2870
02:06:33,446 --> 02:06:35,282
BEFORE WE DO THE ORAL COMMENTS 

2871
02:06:35,282 --> 02:06:37,417
I'LL REMIND EVERYONE THAT YOU 

2872
02:06:37,417 --> 02:06:43,156
EACH RECEIVED IN ADVANCE OF THE 

2873
02:06:43,156 --> 02:06:46,526
MEETING THE -- THE ASSEMBLAGE OF

2874
02:06:46,526 --> 02:06:48,061
THE PUBLIC COMMENT MADE AND 

2875
02:06:48,061 --> 02:06:52,465
SUBMITTED IN ADVANCE FROM MANY 

2876
02:06:52,465 --> 02:06:52,732
MEMBERS.

2877
02:06:52,732 --> 02:06:54,868
WE'LL A SUMMARY OF THAT AFTER 

2878
02:06:54,868 --> 02:06:55,835
ORAL PRESENTATIONS FROM PEOPLE.

2879
02:06:55,835 --> 02:06:57,704
WE HAVE TWO INDIVIDUALS WHO HAVE

2880
02:06:57,704 --> 02:07:00,373
ASKED TO GIVE ORAL COMMENTS TO 

2881
02:07:00,373 --> 02:07:00,874
THIS COMMITTEE.

2882
02:07:00,874 --> 02:07:03,443
THEY'LL EACH BE ALLOTTED THREE 

2883
02:07:03,443 --> 02:07:05,779
MINUTES TO GIVE THOSE COMMENTS.

2884
02:07:05,779 --> 02:07:07,347
AND THERE ARE ADDITIONAL WRITTEN

2885
02:07:07,347 --> 02:07:08,315
COMMENTS AS WELL FROM BOTH THE 

2886
02:07:08,315 --> 02:07:10,984
INDIVIDUALS IF YOU'D LIKE TO 

2887
02:07:10,984 --> 02:07:12,686
LOOK AT THEM.

2888
02:07:12,686 --> 02:07:16,323
AGAIN, NOW HERE AT THE MEETING.

2889
02:07:16,323 --> 02:07:19,559
THE FIRST PUBLIC COMMENTER IS 

2890
02:07:19,559 --> 02:07:20,894
NICOLE CORRADO.

2891
02:07:20,894 --> 02:07:22,028
I HOPE I'M STAYING THAT 

2892
02:07:22,028 --> 02:07:27,567
CORRECTLY AND APPEARING 

2893
02:07:27,567 --> 02:07:37,744
VIRTUALLY.

2894
02:07:48,188 --> 02:07:50,790
 NICOLE ARE YOU ON THE PHONE?

2895
02:07:50,790 --> 02:07:55,562
>> WE MAY NEED COME BACK
TO HER 

2896
02:07:55,562 --> 02:07:56,429
LATER IN THE SESSION.

2897
02:07:56,429 --> 02:07:58,865
>> I'LL ASK THE SECOND
COMMENTER

2898
02:07:58,865 --> 02:08:04,604
TO COME TO THE PODIUM I BELIEVE 

2899
02:08:04,604 --> 02:08:14,914
SHE'S IN THE ROOM.

2900
02:08:25,625 --> 02:08:27,894
>> PUBLIC SPEAKING IS NOT
MY 

2901
02:08:27,894 --> 02:08:29,162
FORTE AND I'M FROM NEW JERSEY 

2902
02:08:29,162 --> 02:08:32,332
AND FORGIVE ME IF I GO OVER MY 

2903
02:08:32,332 --> 02:08:32,932
ALLOTTED TIME.

2904
02:08:32,932 --> 02:08:34,200
I'LL DO MY BEST.

2905
02:08:34,200 --> 02:08:36,703
I'M NOT A Ph.D. OR M.D.

2906
02:08:36,703 --> 02:08:39,172
I'M A MOM OF FOUR BOYS.

2907
02:08:39,172 --> 02:08:43,209
ONE WHO HAD SEVERE AUTISM.

2908
02:08:43,209 --> 02:08:46,146
HE WAS DIAGNOSED WITH AUTISM, 

2909
02:08:46,146 --> 02:08:47,380
EPILEPSY AND INTELLECTUALLY 

2910
02:08:47,380 --> 02:08:48,014
DISABLED.

2911
02:08:48,014 --> 02:08:50,884
MY STORY IS A SAD AND TRAGIC 

2912
02:08:50,884 --> 02:08:51,084
STORY.

2913
02:08:51,084 --> 02:08:55,588
HE PASSED AWAY IN 2021 IN AUGUST

2914
02:08:55,588 --> 02:09:00,193
ON THE 24th OF THE CARE WHILE 

2915
02:09:00,193 --> 02:09:01,328
SEEKING MENTAL HEALTH HELP.

2916
02:09:01,328 --> 02:09:02,696
WE'RE A MILITARY FAMILY.

2917
02:09:02,696 --> 02:09:05,265
MY HUSBAND SERVED 30 YEARS OF 

2918
02:09:05,265 --> 02:09:11,571
ACTIVE DUTY IN THE ARMY WHICH 

2919
02:09:11,571 --> 02:09:14,607
CAME WITH MANY CHALLENGES 

2920
02:09:14,607 --> 02:09:15,475
ESPECIALLY WITH A CHILD WITH 

2921
02:09:15,475 --> 02:09:15,975
SPECIAL NEEDS.

2922
02:09:15,975 --> 02:09:19,646
HE WAS BORN IN TUSCANY, ITALY.

2923
02:09:19,646 --> 02:09:21,514
HE WAS A HEALTHY BABY.

2924
02:09:21,514 --> 02:09:25,652
HE WAS A HEALTHY BABY, I HAD A 

2925
02:09:25,652 --> 02:09:26,052
HEALTHY PREGNANCY.

2926
02:09:26,052 --> 02:09:28,254
HE WAS A HAPPY BABY AND WHEN WE 

2927
02:09:28,254 --> 02:09:29,356
MOVED BACK TO THE STATES I 

2928
02:09:29,356 --> 02:09:30,824
STARTED TO NOTICE HE WAS NOT 

2929
02:09:30,824 --> 02:09:33,326
DEVELOPING LIKE HIS OLDER 

2930
02:09:33,326 --> 02:09:33,593
BROTHERS.

2931
02:09:33,593 --> 02:09:36,296
UPON TAKING HIM TO HIS 

2932
02:09:36,296 --> 02:09:41,901
PEDIATRICIAN IN 2004 I WAS TOLD 

2933
02:09:41,901 --> 02:09:43,403
I DIDN'T NEED TO WORRY.

2934
02:09:43,403 --> 02:09:45,405
SHE'S JUST THE SECOND BOY, HE'LL

2935
02:09:45,405 --> 02:09:47,507
BE FINE AND I KNEW MY SON WAS 

2936
02:09:47,507 --> 02:09:49,943
NOT WHERE HE SHOULD BE.

2937
02:09:49,943 --> 02:09:53,413
SO I USED MY MOTHER INSTINCT AND

2938
02:09:53,413 --> 02:09:55,682
GOT HIM DIAGNOSED RIGHT DOWN THE

2939
02:09:55,682 --> 02:09:56,916
STREET AT THE NAVAL HOSPITAL AND

2940
02:09:56,916 --> 02:09:59,619
HE WAS DIAGNOSED ON THE AUTISM 

2941
02:09:59,619 --> 02:10:02,455
SPECTRUM AND MY HUSBAND DEPLOYED

2942
02:10:02,455 --> 02:10:05,425
TO IRAQ ABOUT FOUR WEEKS LATER.

2943
02:10:05,425 --> 02:10:08,161
AND HE LEFT FOR OVER A YEAR AND 

2944
02:10:08,161 --> 02:10:10,530
I HAD TO MANAGE AND TRY TO 

2945
02:10:10,530 --> 02:10:13,967
UNDERSTAND THIS NEW JOURNEY OF 

2946
02:10:13,967 --> 02:10:19,205
AUTISM AS BACK THEN IN 2004 WE 

2947
02:10:19,205 --> 02:10:22,642
STILL WERE TRYING TO UNDERSTAND 

2948
02:10:22,642 --> 02:10:25,245
AUTISM, JENNY McCARTHY WAS VERY 

2949
02:10:25,245 --> 02:10:28,047
VERBAL ABOUT IT BACK THEN AND 

2950
02:10:28,047 --> 02:10:30,517
THAT'S WHEN THE CONTROVERSY 

2951
02:10:30,517 --> 02:10:32,685
STARTED WITH VACCINES.

2952
02:10:32,685 --> 02:10:33,987
I'M PRO SCIENCE AND VACCINES.

2953
02:10:33,987 --> 02:10:35,622
I HAVE FOUR TYPICAL AND HEALTHY 

2954
02:10:35,622 --> 02:10:37,957
BOYS AND OUR JOURNEY WAS A VERY 

2955
02:10:37,957 --> 02:10:39,259
DIFFICULT ONE.

2956
02:10:39,259 --> 02:10:42,595
AS ZACHARY DEVELOPED, WE FACED 

2957
02:10:42,595 --> 02:10:44,864
MANY CHALLENGES OF THERAPY, 

2958
02:10:44,864 --> 02:10:45,565
SCHOOLING, HEALTH CARE AND I WAS

2959
02:10:45,565 --> 02:10:49,035
VERY LUCKY TO GO AND MEET DOWN 

2960
02:10:49,035 --> 02:10:51,638
WITH A CONGRESSIONAL PANEL TWICE

2961
02:10:51,638 --> 02:10:54,174
ABOUT TRI-CARE FIGHTING FOR 

2962
02:10:54,174 --> 02:10:55,575
THERAPY FOR ZACHARY AND WHAT 

2963
02:10:55,575 --> 02:10:57,110
MILITARY FAMILIES HAVE GO 

2964
02:10:57,110 --> 02:10:57,410
THROUGH.

2965
02:10:57,410 --> 02:10:59,379
WE HAVE VERY SIGNIFICANT 

2966
02:10:59,379 --> 02:11:02,115
CHALLENGES WITH MILITARY LIFE.

2967
02:11:02,115 --> 02:11:05,785
MOVING DEPLOYMENTS, EDUCATION, 

2968
02:11:05,785 --> 02:11:08,354
THERAPY AND IT WAS A JOURNEY I 

2969
02:11:08,354 --> 02:11:12,125
WAS VERY PASSIONATE ABOUT.

2970
02:11:12,125 --> 02:11:14,060
WHEN ZACHARY STARTED CONTINUING 

2971
02:11:14,060 --> 02:11:17,464
TO GROW AND HIS CHALLENGES 

2972
02:11:17,464 --> 02:11:20,133
BECAME VERY INTENSE, 

2973
02:11:20,133 --> 02:11:22,402
AGGRESSION -- I REALIZED WE WERE

2974
02:11:22,402 --> 02:11:23,570
FAILING HIM IN GIVING HIM WHAT 

2975
02:11:23,570 --> 02:11:25,805
HE NEEDED.

2976
02:11:25,805 --> 02:11:31,978
AND SO I CONTINUED TO FIGHT THE 

2977
02:11:31,978 --> 02:11:34,781
SCHOOLS AND GET HIM WITH WHAT I 

2978
02:11:34,781 --> 02:11:36,983
THOUGHT WAS THE BEST FOR HIS 

2979
02:11:36,983 --> 02:11:37,750
LIFE.

2980
02:11:37,750 --> 02:11:40,653
IN 2013 MY HUSBAND RETIRED AND 

2981
02:11:40,653 --> 02:11:45,225
WE MOVED FROM OUR Ft. MEADE FROM

2982
02:11:45,225 --> 02:11:47,260
OUR MILITARY FAMILY AND COVID 

2983
02:11:47,260 --> 02:11:47,927
HIT MONTHS LATER.

2984
02:11:47,927 --> 02:11:51,531
I WAS FIGHTING FOR ZACHARY TO 

2985
02:11:51,531 --> 02:11:53,967
STAY AT KENNEDY KRIEGER HIGH 

2986
02:11:53,967 --> 02:11:54,467
SCHOOL.

2987
02:11:54,467 --> 02:11:58,004
IT WAS DIFFICULT AND HIS WORLD 

2988
02:11:58,004 --> 02:11:58,771
FELL APART.

2989
02:11:58,771 --> 02:12:01,975
SO COVID WAS CHALLENGING FOR 

2990
02:12:01,975 --> 02:12:04,477
MANY FAMILIES NOT JUST MINE AND 

2991
02:12:04,477 --> 02:12:06,012
WE WERE LOST.

2992
02:12:06,012 --> 02:12:07,647
I REACHED OUT TO EVERY AGENCY 

2993
02:12:07,647 --> 02:12:09,849
THAT WOULD LISTEN.

2994
02:12:09,849 --> 02:12:14,821
AND ZACHARY'S BEHAVIOR BECAME 

2995
02:12:14,821 --> 02:12:15,588
INCREASINGLY WORSE.

2996
02:12:15,588 --> 02:12:17,790
IN 2020 I WAS TOLD BY HIS 

2997
02:12:17,790 --> 02:12:20,026
PSYCHIATRIST HE NEEDS TO GO TO 

2998
02:12:20,026 --> 02:12:21,294
SHEPHERD PRATT AND IN ORDER TO 

2999
02:12:21,294 --> 02:12:23,930
GET THERE HE HAD TO GO TO E.R. 

3000
02:12:23,930 --> 02:12:25,031
FIRST.

3001
02:12:25,031 --> 02:12:26,900
WE ADMITTED HIM TO E.R. IN THE 

3002
02:12:26,900 --> 02:12:28,568
MIDDLE OF COVID WITH DOCTORS 

3003
02:12:28,568 --> 02:12:32,205
TRAINED FOR EMERGENCIES NOT 

3004
02:12:32,205 --> 02:12:35,942
TRAINED TO MENTAL HEALTH PATIENT

3005
02:12:35,942 --> 02:12:39,679
OR AUTISTIC ADULTS OR VIOLENT 

3006
02:12:39,679 --> 02:12:41,447
AUTISTIC ADULTS.

3007
02:12:41,447 --> 02:12:44,951
THAT'S WHEN OUR JOURNEY STARTED.

3008
02:12:44,951 --> 02:12:47,053
HE WAS THERE FOR FOUR WEEKS 

3009
02:12:47,053 --> 02:12:51,991
WITHOUT A WINDOW, SPEECH THERAPY

3010
02:12:51,991 --> 02:12:53,560
AND BASIC NEEDS, SUNLIGHT, 

3011
02:12:53,560 --> 02:12:54,694
EXERCISE, HE WAS NOT GETTING.

3012
02:12:54,694 --> 02:12:59,032
ALL LONG I WAS FIGHTING WITH 

3013
02:12:59,032 --> 02:13:00,700
EVERY AGENCY ASKING THEM FOR 

3014
02:13:00,700 --> 02:13:03,336
HELP FOR A BED AT SHEPHERD 

3015
02:13:03,336 --> 02:13:03,970
PRATT.

3016
02:13:03,970 --> 02:13:07,307
THERE ARE I BELIEVE STILL SEVEN 

3017
02:13:07,307 --> 02:13:08,007
NEUROLOGICAL BEHAVIORAL BEDS AT 

3018
02:13:08,007 --> 02:13:10,243
SHEPHERD PRATT FOR THE ENTIRE 

3019
02:13:10,243 --> 02:13:10,476
REGION.

3020
02:13:10,476 --> 02:13:15,214
SO ALL OF THESE PATIENTS THAT 

3021
02:13:15,214 --> 02:13:17,483
WERE WAITING TO GET MENTAL 

3022
02:13:17,483 --> 02:13:19,919
HEALTH SERVICES DESPERATELY 

3023
02:13:19,919 --> 02:13:21,955
NEEDED WERE NOT THERE AND 

3024
02:13:21,955 --> 02:13:23,222
GETTING BEDS.

3025
02:13:23,222 --> 02:13:26,392
IN NOVEMBER OF 2020 WAS IN THE 

3026
02:13:26,392 --> 02:13:27,794
E.R. FOR FOUR WEEKS.

3027
02:13:27,794 --> 02:13:30,330
I SAW HE WAS GETTING MOVED WHEN 

3028
02:13:30,330 --> 02:13:32,332
I SAW HE WAS COVID TESTED AND 

3029
02:13:32,332 --> 02:13:34,500
WAS NEGATIVE SO THEY MOVED HIM 

3030
02:13:34,500 --> 02:13:36,469
TO SHEPHERD PRATT AND I WAS 

3031
02:13:36,469 --> 02:13:37,971
HOPEFUL AND HAPPY HE'D GET 

3032
02:13:37,971 --> 02:13:40,006
REGULATED AND GET SOME NORMALCY 

3033
02:13:40,006 --> 02:13:40,273
BACK.

3034
02:13:40,273 --> 02:13:41,641
HE WAS ONLY HOME WITH US A 

3035
02:13:41,641 --> 02:13:42,609
COUPLE MONTHS.

3036
02:13:42,609 --> 02:13:45,211
HE WAS ONLY AT SHEPHERD PRATT 

3037
02:13:45,211 --> 02:13:46,379
FOR 10 DAYS.

3038
02:13:46,379 --> 02:13:48,648
THEY WERE ABLE TO AT BEST THEY 

3039
02:13:48,648 --> 02:13:51,284
COULD STABILIZE HIM AND HE WAS 

3040
02:13:51,284 --> 02:13:53,119
RETURNED TO US AND WE CONTINUED 

3041
02:13:53,119 --> 02:13:55,655
WITH COVID AND HE WASN'T GETTING

3042
02:13:55,655 --> 02:13:57,657
THE SCHOOLING AND KENNEDY 

3043
02:13:57,657 --> 02:13:59,559
KRIEGER AND THE OTHER SERVICES 

3044
02:13:59,559 --> 02:14:02,128
HE WAS JUST NOT LIVING WHAT HE 

3045
02:14:02,128 --> 02:14:03,129
WAS LIVING BEFORE COVID.

3046
02:14:03,129 --> 02:14:07,000
SO AGAIN IN JUNE OF 2021 AFTER 

3047
02:14:07,000 --> 02:14:09,302
REACHING OUT TO THERAPISTS AND 

3048
02:14:09,302 --> 02:14:11,571
DOCTORS AND SCHOOL AND DDA, ALL 

3049
02:14:11,571 --> 02:14:13,539
THE AGENCY COULD HELP ME SAID 

3050
02:14:13,539 --> 02:14:15,808
NEEDS IT GO BACK TO SHEPHERD 

3051
02:14:15,808 --> 02:14:16,075
PRATT.

3052
02:14:16,075 --> 02:14:17,477
I WAS HOPEFUL THIS TIME WOULD 

3053
02:14:17,477 --> 02:14:23,583
ONLY BE A COUPLE DAYS BUT HE 

3054
02:14:23,583 --> 02:14:30,890
WAITED SEVEN WEEKS IN THE E.R. 

3055
02:14:30,890 --> 02:14:32,225
AND WONDERING WHAT SHOULD WE DO?

3056
02:14:32,225 --> 02:14:34,093
I KNEW WE HAD TO LEAVE HIM TO 

3057
02:14:34,093 --> 02:14:37,964
GET HIM THE HELP HE NEEDED.

3058
02:14:37,964 --> 02:14:40,700
AT THE SEVEN WEEK MARKET I SAW 

3059
02:14:40,700 --> 02:14:43,002
ON MY CHART AGAIN HE WAS COVID 

3060
02:14:43,002 --> 02:14:44,337
TESTED AND HE WOULD BE MOVED.

3061
02:14:44,337 --> 02:14:54,881
AT 10 DAYS AT SHEPHERD PRATT I 

3062
02:14:56,716 --> 02:14:59,085
RECEIVED A CALL WITH MY SON THAT

3063
02:14:59,085 --> 02:15:00,420
I LOST MY SON.

3064
02:15:00,420 --> 02:15:02,388
I DIDN'T KNOW WHAT TO DO.

3065
02:15:02,388 --> 02:15:05,124
WE RELIED ON THE COMMUNITY AND 

3066
02:15:05,124 --> 02:15:06,325
MENTAL HEALTH COMMUNITY TO HELP 

3067
02:15:06,325 --> 02:15:08,494
US AND EVERYONE FAILED US.

3068
02:15:08,494 --> 02:15:10,563
WE WERE FAILED ACROSS THE BOARD.

3069
02:15:10,563 --> 02:15:12,865
AND I DON'T WANT ANOTHER FAMILY 

3070
02:15:12,865 --> 02:15:13,966
TO HAVE TO GO THROUGH WHAT WE 

3071
02:15:13,966 --> 02:15:15,568
WENT THROUGH.

3072
02:15:15,568 --> 02:15:19,972
SO I'M HERE TO TELL YOU ALL THAT

3073
02:15:19,972 --> 02:15:23,009
WE ARE DOING WHAT I THINK WE CAN

3074
02:15:23,009 --> 02:15:24,711
FOR THE AUTISM COMMUNITY BUT 

3075
02:15:24,711 --> 02:15:26,312
THERE NEEDS TO BE MORE THAT HAS 

3076
02:15:26,312 --> 02:15:29,148
TO BE DONE FOR OUR YOUNG ADULTS 

3077
02:15:29,148 --> 02:15:29,615
AND CHILDREN.

3078
02:15:29,615 --> 02:15:32,351
OUR FAMILIES ARE STRUGGLING.

3079
02:15:32,351 --> 02:15:35,588
I'M GETTING PHONE CALLS AND 

3080
02:15:35,588 --> 02:15:37,390
MESSAGES CONSTANTLY FROM OTHER 

3081
02:15:37,390 --> 02:15:39,592
PEOPLE SAYING I'M LIVING THE 

3082
02:15:39,592 --> 02:15:41,394
SAME NIGHTMARE YOU ARE LIVING 

3083
02:15:41,394 --> 02:15:42,695
AND THERE HAS TO BE SOMETHING 

3084
02:15:42,695 --> 02:15:43,963
FOR REAL CHANGE TO GIVE PEOPLE 

3085
02:15:43,963 --> 02:15:45,698
THE REAL LIVES THEY DESERVE.

3086
02:15:45,698 --> 02:15:49,969
MY SON WAS HEALTHY BUT BESIDES 

3087
02:15:49,969 --> 02:15:52,772
THE EPILEPSY, HIS AUTOPSY CAME 

3088
02:15:52,772 --> 02:15:54,273
BACK HEALTHY HEART, LUNGS, 

3089
02:15:54,273 --> 02:15:55,575
EVERYTHING WAS PERFECT FOR HIM.

3090
02:15:55,575 --> 02:16:01,114
HE SHOULD NOT HAVE DIED.

3091
02:16:01,114 --> 02:16:11,657
SO MY SON'S STOREY IS TRAGIC AND

3092
02:16:13,326 --> 02:16:16,462
OUR CHILDREN DESERVE TO LIVE 

3093
02:16:16,462 --> 02:16:19,966
LIVE TO THEIR FULLEST POTENTIAL 

3094
02:16:19,966 --> 02:16:22,268
ANY WAY I CAN TELL MY STORY AND 

3095
02:16:22,268 --> 02:16:23,069
GIVE ADULTS AND THIS COMMUNITY 

3096
02:16:23,069 --> 02:16:25,972
THE BEST OF LIFE THEY CAN LIVE, 

3097
02:16:25,972 --> 02:16:30,276
I WOULD LIKE TO HELP IN ANY WAY.

3098
02:16:30,276 --> 02:16:31,010
>> THANK YOU.

3099
02:16:31,010 --> 02:16:31,477
>> THANK YOU.

3100
02:16:31,477 --> 02:16:34,514
I KNOW I'M PROBABLY OVER MY 

3101
02:16:34,514 --> 02:16:34,747
TIME.

3102
02:16:34,747 --> 02:16:36,816
I DON'T KNOW IF ANYONE HAS 

3103
02:16:36,816 --> 02:16:37,116
QUESTIONS.

3104
02:16:37,116 --> 02:16:41,053
>> TAKE A SEAT AND WE MAY.

3105
02:16:41,053 --> 02:16:41,921
>> THANK YOU.

3106
02:16:41,921 --> 02:16:42,889
>> BEFORE WE OPEN THE
DISCUSSION

3107
02:16:42,889 --> 02:16:45,124
I WANTED TO CHECK AGAIN IF 

3108
02:16:45,124 --> 02:16:48,294
NICOLE CORRADO WAS ON AND ABLE 

3109
02:16:48,294 --> 02:16:49,996
TO CONTRIBUTE HER PUBLIC 

3110
02:16:49,996 --> 02:16:57,970
COMMENTS ORALLY.

3111
02:16:57,970 --> 02:17:01,607
SO SORRY, WE SEEM TO BE HAVING 

3112
02:17:01,607 --> 02:17:03,576
TECHNICAL DIFFICULTIES IN 

3113
02:17:03,576 --> 02:17:07,580
ENSURING HER ABILITY TO TESTIFY 

3114
02:17:07,580 --> 02:17:10,149
HERE.

3115
02:17:10,149 --> 02:17:13,653
I WOULD LIKE TO RECOMMEND THAT 

3116
02:17:13,653 --> 02:17:15,588
EVERYONE LOOK AT HER COMMENTS IN

3117
02:17:15,588 --> 02:17:18,758
THE WRITTEN FORM.

3118
02:17:18,758 --> 02:17:21,994
AND WE'LL NEXT HAVE THE SUMMARY 

3119
02:17:21,994 --> 02:17:23,563
OF WRITTEN COMMENTS AND THEN 

3120
02:17:23,563 --> 02:17:24,430
ENGAGE IN DISCUSSION.

3121
02:17:24,430 --> 02:17:24,831
THANK YOU.

3122
02:17:24,831 --> 02:17:26,365
>> THANK YOU.

3123
02:17:26,365 --> 02:17:33,439
CAN WE GET THET NEXT SLIDE?

3124
02:17:33,439 --> 02:17:34,807
FOR THE SUMMARY OF WRITTEN 

3125
02:17:34,807 --> 02:17:37,343
COMMENTS WE RECEIVED A NUMBER OF

3126
02:17:37,343 --> 02:17:38,244
COMMENTS, 100 COMMENTS SUBMITTED

3127
02:17:38,244 --> 02:17:42,148
ON THE TOPICS LETSED ON THE 

3128
02:17:42,148 --> 02:17:44,350
SLIDES SO WE HAD 37 COMMENTS 

3129
02:17:44,350 --> 02:17:45,718
THAT WERE REGARDING ADDRESSING 

3130
02:17:45,718 --> 02:17:48,421
THE NEEDS OF AUTISTIC 

3131
02:17:48,421 --> 02:17:49,422
INDIVIDUALS WITH HIGH SUPPORT 

3132
02:17:49,422 --> 02:17:55,595
NEEDS AND THE NAMES OF ALL THE 

3133
02:17:55,595 --> 02:17:56,162
COMMENTERS ARE LISTED BELOW.

3134
02:17:56,162 --> 02:17:57,463
AND BY THE WAY, EVERYONE HAS 

3135
02:17:57,463 --> 02:17:58,698
THIS IN YOUR PACKETS.

3136
02:17:58,698 --> 02:18:00,066
THEY'RE ONLINE.

3137
02:18:00,066 --> 02:18:02,501
IF ANY LISTENING AUDIENCE THAT 

3138
02:18:02,501 --> 02:18:03,569
WANTS TO READ THE TEXT OF THE 

3139
02:18:03,569 --> 02:18:07,106
COMMENTS YOU CAN GO TO THE 

3140
02:18:07,106 --> 02:18:08,574
PUBLIC COMMENT PACKETS AND READ 

3141
02:18:08,574 --> 02:18:09,876
THEM.

3142
02:18:09,876 --> 02:18:11,510
WE ALSO HAVE 14 COMMENTS ON 

3143
02:18:11,510 --> 02:18:12,979
RESEARCH AND SERVICES NEEDS, 

3144
02:18:12,979 --> 02:18:13,446
RESOURCES AND POLICY 

3145
02:18:13,446 --> 02:18:18,384
IMPLICATIONS.

3146
02:18:18,384 --> 02:18:19,585
WE HAD EIGHT COMMENTS ON 

3147
02:18:19,585 --> 02:18:20,553
RESEARCH SERVICES AND SUPPORTS 

3148
02:18:20,553 --> 02:18:24,991
FOR AUTISTIC ADULTS.

3149
02:18:24,991 --> 02:18:32,398
SIX COMMENTS ON THE OCCLUSION OF

3150
02:18:32,398 --> 02:18:37,470
PERSPECTIVES ON RESEARCH.

3151
02:18:37,470 --> 02:18:38,304
WE HAVE THREE COMMENTS REGARDING

3152
02:18:38,304 --> 02:18:40,840
EMPLOYMENT.

3153
02:18:40,840 --> 02:18:42,041
FOUR COMMENTS ON MENTAL HEALTH 

3154
02:18:42,041 --> 02:18:46,279
RESEARCH SERVICES AND TREATMENT.

3155
02:18:46,279 --> 02:18:49,982
FIVE COMMENTS ON THE ROLE OF THE

3156
02:18:49,982 --> 02:18:55,354
IACC AND THE FEDERAL GOVERNMENT.

3157
02:18:55,354 --> 02:18:56,022
FOUR COMMENTS ON POTENTIAL 

3158
02:18:56,022 --> 02:19:03,329
CAUSES OF AUTISM.

3159
02:19:03,329 --> 02:19:06,599
TWO COMMENTS ON INCREASING 

3160
02:19:06,599 --> 02:19:07,566
AUTISM ACCEPTANCE AND REDUCING 

3161
02:19:07,566 --> 02:19:10,169
STIGMA.

3162
02:19:10,169 --> 02:19:14,006
FIVE COMMENTS ON INCLUSION OF 

3163
02:19:14,006 --> 02:19:15,574
UNDER REPRESENTED GROUPS WITHIN 

3164
02:19:15,574 --> 02:19:18,244
THE AUTISM COMMUNITY.

3165
02:19:18,244 --> 02:19:20,112
ONE COMMENT ON THE EDUCATIONAL 

3166
02:19:20,112 --> 02:19:24,617
NEEDS AND WORKFORCE TRAINING.

3167
02:19:24,617 --> 02:19:27,153
ONE COMMENT ON COMMUNICATION AND

3168
02:19:27,153 --> 02:19:29,221
ALTERNATIVE AND AUGMENTATIVE 

3169
02:19:29,221 --> 02:19:31,324
COMMUNICATION TECHNIQUES.

3170
02:19:31,324 --> 02:19:33,459
AND ONE COMMENT ON PARENT AND 

3171
02:19:33,459 --> 02:19:34,093
CAREGIVER SUPPORT NEEDS.

3172
02:19:34,093 --> 02:19:36,228
I BELIEVE THAT'S THE END OF THE 

3173
02:19:36,228 --> 02:19:37,029
WRITTEN COMMENTS.

3174
02:19:37,029 --> 02:19:46,539
IS THERE ONE MORE SLIDE?

3175
02:19:46,539 --> 02:19:47,306
THERE'S SEVEN COMMENTS ON 

3176
02:19:47,306 --> 02:19:49,775
CONCERNS AND MEDICAL PRACTICES.

3177
02:19:49,775 --> 02:19:51,544
CONCERNS ABOUT MEDICAL 

3178
02:19:51,544 --> 02:19:52,478
PRACTICES.

3179
02:19:52,478 --> 02:19:55,047
ONE COMMENT ON LANGUAGE 

3180
02:19:55,047 --> 02:19:56,549
REGARDING AUTISM AND ONE COMMENT

3181
02:19:56,549 --> 02:19:59,352
ON THE NEEDS OF THE DIRECT 

3182
02:19:59,352 --> 02:20:01,988
SUPPORT PROFESSIONAL WORKFORCE.

3183
02:20:01,988 --> 02:20:05,157
SO THOSE ARE THE TOPICS THAT WE 

3184
02:20:05,157 --> 02:20:06,359
RECEIVE PUBLIC COMMENTS ON.

3185
02:20:06,359 --> 02:20:07,526
THANK YOU SO MUCH TO EVERYONE 

3186
02:20:07,526 --> 02:20:08,227
WHO WROTE IN.

3187
02:20:08,227 --> 02:20:09,929
OUR COMMITTEE RECEIVED THE 

3188
02:20:09,929 --> 02:20:11,430
COMMENTS IN ADVANCE AND IS 

3189
02:20:11,430 --> 02:20:12,498
INSTRUCTED TO GO AHEAD AND READ 

3190
02:20:12,498 --> 02:20:14,000
THEM SO I KNOW PEOPLE COME 

3191
02:20:14,000 --> 02:20:15,167
PREPARED AND HAVE ALREADY READ 

3192
02:20:15,167 --> 02:20:17,303
THOSE COMMENTS AND WE ALSO MAKE 

3193
02:20:17,303 --> 02:20:18,404
THEM TRANSPARENT TO THE PUBLIC 

3194
02:20:18,404 --> 02:20:20,006
SO EVERYONE CAN SEE THEM SO I'LL

3195
02:20:20,006 --> 02:20:21,741
TURN IT BACK OVER TO DR. GORDON.

3196
02:20:21,741 --> 02:20:23,976
>> THANK YOU, I WANT TO
ADD MY 

3197
02:20:23,976 --> 02:20:30,282
THANKS TO THE PUBLIC COMMENTERS 

3198
02:20:30,282 --> 02:20:37,223
AND ALERT ME IF MS. CORRADO 

3199
02:20:37,223 --> 02:20:39,692
COMES ONLINE TO PROVIDE HER ORAL

3200
02:20:39,692 --> 02:20:39,959
COMMENTS.

3201
02:20:39,959 --> 02:20:41,427
NOW WE'LL OPEN THE FLOOR FROM 

3202
02:20:41,427 --> 02:20:44,430
COMMITTEE MEMBERS ON ANY OF THE 

3203
02:20:44,430 --> 02:20:52,905
PUBLIC COMMENTS MADE OR WRITTEN.

3204
02:20:52,905 --> 02:20:54,940
I SEE A HAND UP.

3205
02:20:54,940 --> 02:20:57,977
PLEASE GIVE US YOUR COMMENTS, 

3206
02:20:57,977 --> 02:20:58,244
QUESTIONS.

3207
02:20:58,244 --> 02:21:02,014
>> HELLO, EVERYONE.

3208
02:21:02,014 --> 02:21:03,682
I TYPICALLY PREFER MESSAGES BUT 

3209
02:21:03,682 --> 02:21:05,751
IT WOULD HAVE BEEN DIFFICULT TO 

3210
02:21:05,751 --> 02:21:10,189
DO AS IT'S LONG.

3211
02:21:10,189 --> 02:21:20,366
THANK YOU.

3212
02:21:30,309 --> 02:21:32,011
I REVIEWED TO GET AN 

3213
02:21:32,011 --> 02:21:33,012
UNDERSTANDING OF WHAT OUR 

3214
02:21:33,012 --> 02:21:34,647
COMMUNITY IS SHARING AND NOTICED

3215
02:21:34,647 --> 02:21:39,585
THERE WERE SIX OVERARCHING 

3216
02:21:39,585 --> 02:21:41,253
THEMES AND WANTED TO DISCUSS 

3217
02:21:41,253 --> 02:21:42,788
THOSE AND FIRST THING I WANTED 

3218
02:21:42,788 --> 02:21:46,058
TO BRING UP SIT NEEDS TO BE 

3219
02:21:46,058 --> 02:21:48,694
EMPHASIZED MORE THAN A THIRD OF 

3220
02:21:48,694 --> 02:21:50,029
THE READ OUTS FOR PUBLIC COMMENT

3221
02:21:50,029 --> 02:21:53,365
WE RECEIVED WERE SPECIFICALLY 

3222
02:21:53,365 --> 02:21:55,801
RELATED TO INDIVIDUALS AND THEIR

3223
02:21:55,801 --> 02:21:59,371
FAMILIES WITH HIGH SUPPORT NEEDS

3224
02:21:59,371 --> 02:22:03,576
AND LEVEL 3 AUTISM PROFOUND 

3225
02:22:03,576 --> 02:22:04,944
AUTISM IS THE ADMINISTRATIVE 

3226
02:22:04,944 --> 02:22:08,114
TERM, 37 ALONE RELATED TO THAT.

3227
02:22:08,114 --> 02:22:12,518
THAT'S OF 100 COMMENTS.

3228
02:22:12,518 --> 02:22:15,221
I JUST WANTED TO HIGHLIGHT SOME 

3229
02:22:15,221 --> 02:22:17,556
OF THE THINGS THAT WERE 

3230
02:22:17,556 --> 02:22:19,558
MENTIONED BY THE FAMILIES OVER 

3231
02:22:19,558 --> 02:22:20,392
AND OVER.

3232
02:22:20,392 --> 02:22:22,561
THERE WAS A LOT OF DISCUSSION 

3233
02:22:22,561 --> 02:22:25,965
ABOUT THE BARRIERS THAT THEY ARE

3234
02:22:25,965 --> 02:22:26,232
FACING.

3235
02:22:26,232 --> 02:22:33,105
MANY PEOPLE SHARED A SENSE OF 

3236
02:22:33,105 --> 02:22:40,212
LACK OF REPRESENTATION AND 

3237
02:22:40,212 --> 02:22:42,548
VISIBILITY AND CAREGIVER OVER 

3238
02:22:42,548 --> 02:22:45,117
WEALTH AND RESPITE AND FEARS IN 

3239
02:22:45,117 --> 02:22:48,287
REGARD TO AGING AND NOT HAVING A

3240
02:22:48,287 --> 02:22:53,759
NUMBER OF HOUSING OPTIONS.

3241
02:22:53,759 --> 02:22:56,061
NO PROGRAMS FOR ADEQUATE 

3242
02:22:56,061 --> 02:22:56,929
SUPERVISION.

3243
02:22:56,929 --> 02:22:58,998
STAFF ISSUES WHERE YOU CANNOT 

3244
02:22:58,998 --> 02:23:01,667
HAVE FAMILY MEMBERS HIRED OR 

3245
02:23:01,667 --> 02:23:04,170
CAN'T GET A ROOM AND ALL THESE 

3246
02:23:04,170 --> 02:23:07,473
THINGS ARE RESULTED IN SUB 

3247
02:23:07,473 --> 02:23:10,009
OPTIMAL HEALTH CARE AND A SENSE 

3248
02:23:10,009 --> 02:23:13,412
OF ISOLATION FOR THE FAMILY AND 

3249
02:23:13,412 --> 02:23:13,779
IMPACTS SAFETY.

3250
02:23:13,779 --> 02:23:19,084
SO MANY PEOPLE MENTIONED THINGS 

3251
02:23:19,084 --> 02:23:26,358
SUCH AS INJURIOUS AND AGGRESSION

3252
02:23:26,358 --> 02:23:30,162
AND COMMUNICATION CHALLENGES AND

3253
02:23:30,162 --> 02:23:30,529
NO CONSISTENCY.

3254
02:23:30,529 --> 02:23:35,401
I WANT DIGNITY FOR MY CHILD.

3255
02:23:35,401 --> 02:23:37,436
WE ARE SLEEP DEPRIVED.

3256
02:23:37,436 --> 02:23:39,138
MY SON GETS BLACK EYES AND WE 

3257
02:23:39,138 --> 02:23:40,472
TALK ABOUT WANDERING AND ALL THE

3258
02:23:40,472 --> 02:23:43,909
THINGS THEY'VE HAD TO TRY TO DO.

3259
02:23:43,909 --> 02:23:47,580
I THINK THE REASON I'M 

3260
02:23:47,580 --> 02:23:49,014
EMPHASIZING AND I'LL BE MORE 

3261
02:23:49,014 --> 02:23:49,982
BRIEF WHEN I GO THROUGH THE 

3262
02:23:49,982 --> 02:23:50,749
OTHER SECTIONS.

3263
02:23:50,749 --> 02:23:54,019
I WANT TO MENTION THIS BECAUSE I

3264
02:23:54,019 --> 02:23:56,689
KNOW SOMETIMES PERCEPTION IS NOT

3265
02:23:56,689 --> 02:23:57,289
ALWAYS REALITY.

3266
02:23:57,289 --> 02:24:01,627
FOR EXAMPLE, THERE'S NOT BEEN A 

3267
02:24:01,627 --> 02:24:06,031
SINGLE MEETING IACC MEETING 

3268
02:24:06,031 --> 02:24:07,600
SINCE I'VE BEEN A MEMBER WHERE 

3269
02:24:07,600 --> 02:24:08,734
THEY'RE TRYING TO INCORPORATE 

3270
02:24:08,734 --> 02:24:10,102
THE NEEDS OF PEOPLE.

3271
02:24:10,102 --> 02:24:13,806
YOU'VE NEVER SET SAID THAT BUT 

3272
02:24:13,806 --> 02:24:15,574
THAT'S WHO MY CHILDREN ARE AS MY

3273
02:24:15,574 --> 02:24:17,042
FAMILY AND I CAN READ BETWEEN 

3274
02:24:17,042 --> 02:24:18,777
THE LINES AND DETERMINE FROM 

3275
02:24:18,777 --> 02:24:19,578
CONTEXT YOU'RE ADDRESSING OUR 

3276
02:24:19,578 --> 02:24:21,981
NEEDS AND TALKING ABOUT US EVEN 

3277
02:24:21,981 --> 02:24:22,581
IF YOU DON'T SPECIFICALLY 

3278
02:24:22,581 --> 02:24:23,849
MENTION US.

3279
02:24:23,849 --> 02:24:25,985
I WANT TO ENCOURAGE FAMILIES -- 

3280
02:24:25,985 --> 02:24:29,355
I KNOW YOU'RE BUSY AND 

3281
02:24:29,355 --> 02:24:30,022
OVERWHELMED BECAUSE YOU'RE NOT 

3282
02:24:30,022 --> 02:24:31,190
HEARING THE TERMS YOU'RE 

3283
02:24:31,190 --> 02:24:33,626
ACCUSTOMED TO HEARING, DO NOT 

3284
02:24:33,626 --> 02:24:35,561
FEAR YOU'RE NEEDS ARE NOT 

3285
02:24:35,561 --> 02:24:37,630
IMPORTANT OR CONSIDERED BUT ALSO

3286
02:24:37,630 --> 02:24:38,831
KNOW WE'RE HEARING YOU AND WHAT 

3287
02:24:38,831 --> 02:24:39,365
YOU SHARE.

3288
02:24:39,365 --> 02:24:41,367
WHAT YOU SHARED WAS IMPORTANT.

3289
02:24:41,367 --> 02:24:43,602
THESE THINGS ABOUT WANDERING 

3290
02:24:43,602 --> 02:24:46,105
DEATH AND PROPERTY DESTRUCTION, 

3291
02:24:46,105 --> 02:24:46,705
SELF-INJURY.

3292
02:24:46,705 --> 02:24:47,940
THESE THINGS ARE NOT ACCEPTABLE 

3293
02:24:47,940 --> 02:24:51,577
AND DOESN'T MATTER IF YOU'RE A 

3294
02:24:51,577 --> 02:24:55,581
THIRD OR 1% OF THE POPULATION IN

3295
02:24:55,581 --> 02:24:57,816
ADDRESSING THE OTHER AREAS.

3296
02:24:57,816 --> 02:24:59,985
AND PEOPLE TALKED ABOUT THE 

3297
02:24:59,985 --> 02:25:01,920
UNIQUE AND UNADDRESSED 

3298
02:25:01,920 --> 02:25:03,622
CHALLENGES OF UNDER REPRESENTED 

3299
02:25:03,622 --> 02:25:04,490
GROUPS WITH INTELLECTUAL 

3300
02:25:04,490 --> 02:25:06,625
DISABILITY AND REFUGEE, PEOPLE 

3301
02:25:06,625 --> 02:25:09,628
OF COLOR, FOSTER CHILDREN.

3302
02:25:09,628 --> 02:25:12,364
AND SO FORTH.

3303
02:25:12,364 --> 02:25:15,434
PEOPLE TALKED A LOT ABOUT 

3304
02:25:15,434 --> 02:25:16,535
SERVICES AND THE SYSTEMS 

3305
02:25:16,535 --> 02:25:18,003
NAVIGATION AND HOW PEOPLE ARE 

3306
02:25:18,003 --> 02:25:19,371
HAVING TO MANAGE THESE THINGS 

3307
02:25:19,371 --> 02:25:22,007
AND THERE ISN'T ENOUGH CASE 

3308
02:25:22,007 --> 02:25:23,375
MANAGEMENT OR ADEQUATE SHARED 

3309
02:25:23,375 --> 02:25:26,345
DECISION MAKES, SERVICE CUT 

3310
02:25:26,345 --> 02:25:26,545
OFFS.

3311
02:25:26,545 --> 02:25:28,480
PEOPLE CAN'T GET WHAT THEY NEED.

3312
02:25:28,480 --> 02:25:30,282
NOT ENOUGH SUPPORT WITH 

3313
02:25:30,282 --> 02:25:31,917
COMMUNITY LIVING AND SEGREGATION

3314
02:25:31,917 --> 02:25:34,353
IN SCHOOLS AND NOT ADEQUATE 

3315
02:25:34,353 --> 02:25:35,587
WORKFORCE AND REHABILITATION 

3316
02:25:35,587 --> 02:25:36,522
PROGRAMS AND PEOPLE TALKED ABOUT

3317
02:25:36,522 --> 02:25:39,525
RESEARCH NEEDS AND WANTING TO 

3318
02:25:39,525 --> 02:25:41,627
INCLUDE GROUPS INCLUDED BECAUSE 

3319
02:25:41,627 --> 02:25:43,529
OF BECAUSE OF INTELLECTUAL 

3320
02:25:43,529 --> 02:25:47,199
DISABILITY AND PRACTICAL BENEFIT

3321
02:25:47,199 --> 02:25:49,101
OF PARENTS OR AUTISTIC PEOPLE 

3322
02:25:49,101 --> 02:25:54,440
PEOPLE SAID THINGS THAT HELP US 

3323
02:25:54,440 --> 02:26:01,280
NOW NOT THINGS THAT ARE IDEAL 

3324
02:26:01,280 --> 02:26:03,582
BUT RIGHT NOW AND PEOPLE SHARED 

3325
02:26:03,582 --> 02:26:05,150
ABOUT MEDICAL TRAUMA.

3326
02:26:05,150 --> 02:26:07,486
WANTING HEALTH CARE PROVIDERS TO

3327
02:26:07,486 --> 02:26:11,056
BE BETTER EQUIPPED TO ADDRESS 

3328
02:26:11,056 --> 02:26:12,024
THEIR NEEDS AND IDENTIFICATION 

3329
02:26:12,024 --> 02:26:13,826
AND SERVICES ACROSS THE LIFE 

3330
02:26:13,826 --> 02:26:14,026
SPAN.

3331
02:26:14,026 --> 02:26:16,428
IF YOU ALL SHARED -- THERE'S A 

3332
02:26:16,428 --> 02:26:19,565
LOT HERE FOR US AND I WANT TO 

3333
02:26:19,565 --> 02:26:23,235
CHALLENGE MYSELF AND MY 

3334
02:26:23,235 --> 02:26:24,503
COLLEAGUES WE TALKED ABOUT THE 

3335
02:26:24,503 --> 02:26:26,004
RESEARCH IN IACC MEETINGS.

3336
02:26:26,004 --> 02:26:29,942
I THINK WE DO NEED TO HONE IN 

3337
02:26:29,942 --> 02:26:32,010
DEEPLY ON THESE ISSUES WITH 

3338
02:26:32,010 --> 02:26:33,545
SERVICES BECAUSE THINGS FAMILIES

3339
02:26:33,545 --> 02:26:35,381
ARE SHARING I CAN RELATE TO 

3340
02:26:35,381 --> 02:26:36,048
BEING A MOMMY SELF.

3341
02:26:36,048 --> 02:26:37,983
I CAN UNDERSTAND SOME OF THESE 

3342
02:26:37,983 --> 02:26:39,585
THINGS ARE JUST NOT THERE.

3343
02:26:39,585 --> 02:26:41,353
THE SERVICES ARE JUST NOT THERE 

3344
02:26:41,353 --> 02:26:42,154
FOR US.

3345
02:26:42,154 --> 02:26:43,589
AND YOU DO FEEL WHAT'S GOING TO 

3346
02:26:43,589 --> 02:26:47,192
HAPPEN WHEN YOU GDIE.

3347
02:26:47,192 --> 02:26:49,595
WHAT WILL HAPPEN TO YOUR CHILD?

3348
02:26:49,595 --> 02:26:52,731
WE TALKED ABOUT WORK GROUPS AND 

3349
02:26:52,731 --> 02:26:56,902
I HOPE THIS MAY BE SOMETHING WE 

3350
02:26:56,902 --> 02:27:01,807
MIGHT CONSIDERING TRYING TO 

3351
02:27:01,807 --> 02:27:06,545
ADDRESS IN A MORE DIRECT AND 

3352
02:27:06,545 --> 02:27:07,146
IMPACTFUL WAY.

3353
02:27:07,146 --> 02:27:17,489
THANK YOU VERY MUCH.

3354
02:27:38,877 --> 02:27:40,913
>> EVERY TIME I HAVE
THERAPY 

3355
02:27:40,913 --> 02:27:43,015
I'LL HAVE A DECLINE AND WHEN YOU

3356
02:27:43,015 --> 02:27:44,716
HAVE COOCCURRING CONDITIONS OR 

3357
02:27:44,716 --> 02:27:46,852
LOW MUSCLE TONE YOU NEED ONGOING

3358
02:27:46,852 --> 02:27:49,788
COMMITTED REGULAR THERAPY AND SO

3359
02:27:49,788 --> 02:27:51,590
I DO HOPE WE CAN TALK AT SOME 

3360
02:27:51,590 --> 02:27:56,762
POINT ABOUT POLICIES TO SHIFT 

3361
02:27:56,762 --> 02:28:07,272
THAT AND WHY AREN'T PROGRAMS 

3362
02:28:14,079 --> 02:28:16,782
ACCESSIBLE TO PEOPLE CAN ACCESS 

3363
02:28:16,782 --> 02:28:20,452
THEM SO THEY DON'T HAVE TO HIRE 

3364
02:28:20,452 --> 02:28:21,520
PROFESSIONALS TO TEASE THESE 

3365
02:28:21,520 --> 02:28:21,854
OUT.

3366
02:28:21,854 --> 02:28:23,155
IT'S FRUSTRATING.

3367
02:28:23,155 --> 02:28:25,090
THERE'S SEVERE CONSEQUENCES AS 

3368
02:28:25,090 --> 02:28:27,526
YOU BROUGHT UP TODAY WHEN WE HAD

3369
02:28:27,526 --> 02:28:28,227
THOSE SYSTEM DELAYS.

3370
02:28:28,227 --> 02:28:31,196
I THING AS A BODY WE CAN START 

3371
02:28:31,196 --> 02:28:32,464
TO DISCUSS WHAT KINDS OF DELAYS 

3372
02:28:32,464 --> 02:28:37,202
PEOPLE ARE ENDURING.

3373
02:28:37,202 --> 02:28:39,338
THERE WAS TALK ABOUT RESTRAINT 

3374
02:28:39,338 --> 02:28:39,972
IN PUBLIC SCHOOLS.

3375
02:28:39,972 --> 02:28:47,246
I THINK THAT NEEDS TO END.

3376
02:28:47,246 --> 02:28:49,815
MORE IMPORTANTLY IS WHEN SHE 

3377
02:28:49,815 --> 02:28:53,118
SAID SHE LOOKED AND SAID I NEED 

3378
02:28:53,118 --> 02:28:55,087
GOD TO TAKE CARE OF MY KID.

3379
02:28:55,087 --> 02:28:56,822
HOW MANY PEOPLE ARE NOT NOT 

3380
02:28:56,822 --> 02:28:57,990
WORKFORCE BECAUSE WE HAVE 

3381
02:28:57,990 --> 02:28:59,591
INADEQUATE SUPPORT FOR THESE 

3382
02:28:59,591 --> 02:29:00,492
FAMILIES.

3383
02:29:00,492 --> 02:29:05,531
AND THEN I APPRECIATED ALL THE 

3384
02:29:05,531 --> 02:29:08,033
COMMENTS AROUND THE UNDER 

3385
02:29:08,033 --> 02:29:10,068
REPRESENTATION OF PEOPLE 

3386
02:29:10,068 --> 02:29:11,236
ASSIGNED AT BIRTH AND THE AUTISM

3387
02:29:11,236 --> 02:29:12,271
RESEARCH.

3388
02:29:12,271 --> 02:29:14,006
WE CONTINUE TO BE THE LEAST 

3389
02:29:14,006 --> 02:29:16,842
PROGRESSING IN TERMS OF 

3390
02:29:16,842 --> 02:29:21,380
PREVALENCE IDENTIFICATION OF ANY

3391
02:29:21,380 --> 02:29:25,984
OF THE MINORITY POPULATIONS OF 

3392
02:29:25,984 --> 02:29:27,586
COURSE WE HAVE 

3393
02:29:27,586 --> 02:29:28,687
INTERSECTIONALITIES TO 

3394
02:29:28,687 --> 02:29:30,422
MARGINALIZE MORE AND IN LIGHT OF

3395
02:29:30,422 --> 02:29:35,561
OUR LAST MEETING, AJ LINK AND 

3396
02:29:35,561 --> 02:29:36,862
THEIR COMPREHENSIVE COMMENT ON 

3397
02:29:36,862 --> 02:29:38,764
THE NEED FOR EARLY AND ONGOING 

3398
02:29:38,764 --> 02:29:41,833
ACCESS TO AAC FOR MINIMALLY 

3399
02:29:41,833 --> 02:29:43,569
SPEAKING, NON-SPEAKING PEOPLE 

3400
02:29:43,569 --> 02:29:49,408
AND I KNOW MANY PEOPLE VERY 

3401
02:29:49,408 --> 02:29:50,275
EVENTUALLY COMPETENT AND RELAXED

3402
02:29:50,275 --> 02:29:51,910
SETTING BUT WHEN THEY'RE 

3403
02:29:51,910 --> 02:29:54,046
CONFRONTED WITH PRESSURE TO 

3404
02:29:54,046 --> 02:29:55,347
CONFORM, IT'S A HEALTH CARE 

3405
02:29:55,347 --> 02:29:56,014
SITUATION.

3406
02:29:56,014 --> 02:29:57,049
THEY'RE LANGUAGE EVAPORATES.

3407
02:29:57,049 --> 02:30:00,218
WHEN WE THINK OF AAC WE NEED TO 

3408
02:30:00,218 --> 02:30:01,486
TALK ABOUT EARLY BUT ONGOING 

3409
02:30:01,486 --> 02:30:04,823
ACCESS FOR THIS COMMUNITY.

3410
02:30:04,823 --> 02:30:05,891
THANK YOU FOR TAKING MY 

3411
02:30:05,891 --> 02:30:06,158
COMMENTS.

3412
02:30:06,158 --> 02:30:16,501
>> THANK YOU, DENA.

3413
02:30:18,503 --> 02:30:24,843
I WANT TO THANK YOU AND MORENIKE

3414
02:30:24,843 --> 02:30:29,281
FOR COMMENTS MADE.

3415
02:30:29,281 --> 02:30:31,817
THE CDC DATA HAS SHOWN 

3416
02:30:31,817 --> 02:30:38,724
TREMENDOUS STRIDES IN NARROWING 

3417
02:30:38,724 --> 02:30:43,462
THE DIAGNOSIS FOR GROUPS OF ALL 

3418
02:30:43,462 --> 02:30:43,729
KINDS.

3419
02:30:43,729 --> 02:30:45,063
THAT'S ONE THING AND SOMETHING 

3420
02:30:45,063 --> 02:30:46,331
THE COMMITTEE TALKED ABOUT YEARS

3421
02:30:46,331 --> 02:30:48,133
AND YEARS AGO AND THERE'S STILL 

3422
02:30:48,133 --> 02:30:50,002
MANY OTHER DISPARITIES BUT I 

3423
02:30:50,002 --> 02:30:51,570
APPRECIATE YOU BRIEFLY 

3424
02:30:51,570 --> 02:30:56,408
HIGHLIGHTING THAT FOR US.

3425
02:30:56,408 --> 02:30:58,543
>> I'M ECSTATIC WE'RE
FINDING 

3426
02:30:58,543 --> 02:31:00,112
PEOPLE OF COLOR WITH BETTER 

3427
02:31:00,112 --> 02:31:01,113
REPORTING AND OUTCOME.

3428
02:31:01,113 --> 02:31:03,949
WHEN YOU LOOK AT HOW THE NUMBERS

3429
02:31:03,949 --> 02:31:06,918
HAVE INCREASED WITH 8 YEAR OLDS,

3430
02:31:06,918 --> 02:31:09,688
WE'RE SEEING 8-YEAR-OLD GIRLS 

3431
02:31:09,688 --> 02:31:11,556
WILL NOT BE IDENTIFIED UNLESS 

3432
02:31:11,556 --> 02:31:13,158
THEY'RE EXPRESSIVE IN THEIR 

3433
02:31:13,158 --> 02:31:13,525
FEATURES.

3434
02:31:13,525 --> 02:31:14,993
>> STILL EIGHT OF
RESOURCES AS 

3435
02:31:14,993 --> 02:31:18,597
YOU POINT OUT DIFFERENCES IN 

3436
02:31:18,597 --> 02:31:20,699
PRESENTATION AND OTHER ASPECTS 

3437
02:31:20,699 --> 02:31:25,837
OF AUTISM IN INDIVIDUALS 

3438
02:31:25,837 --> 02:31:27,472
ASSIGNED FEMALE AT BIRTH.

3439
02:31:27,472 --> 02:31:30,442
WE HAVE SCOTT IVANOVA AND JENNY 

3440
02:31:30,442 --> 02:31:31,143
AND PAUL.

3441
02:31:31,143 --> 02:31:31,343
OKAY.

3442
02:31:31,343 --> 02:31:35,414
GO AHEAD, SCOTT.

3443
02:31:35,414 --> 02:31:38,417
>> THANKS, DR. GORDON.

3444
02:31:38,417 --> 02:31:41,286
I WANTED TO EXPRESS MY 

3445
02:31:41,286 --> 02:31:42,888
SOLIDARITY WITH CHERYL AND THANK

3446
02:31:42,888 --> 02:31:44,823
YOU FOR CHERYL THAT PERSONAL 

3447
02:31:44,823 --> 02:31:45,490
NARRATIVE OF THE LIVED 

3448
02:31:45,490 --> 02:31:47,025
EXPERIENCE OF HERSELF AND FAMILY

3449
02:31:47,025 --> 02:31:53,231
AND WHAT HAD HAPPENED TO HER SON

3450
02:31:53,231 --> 02:31:54,800
AS FAR AS INADEQUATE SUPPORTS IN

3451
02:31:54,800 --> 02:31:55,967
MENTAL HEALTH IN THE SERVICE 

3452
02:31:55,967 --> 02:31:57,536
SYSTEM AND I HOPE THAT COMES TO 

3453
02:31:57,536 --> 02:32:00,172
INFORM SOME OF OUR DISCUSSIONS 

3454
02:32:00,172 --> 02:32:02,007
AND LATER ON THIS AFTERNOON ON 

3455
02:32:02,007 --> 02:32:05,510
THE EMPLOYMENT END, I JUST 

3456
02:32:05,510 --> 02:32:10,615
WANTED TO EMPHASIZE THAT I 

3457
02:32:10,615 --> 02:32:12,017
APPRECIATE THE COMMENTS ABOUT 

3458
02:32:12,017 --> 02:32:13,618
BARRIERS AND CHALLENGES AND 

3459
02:32:13,618 --> 02:32:16,188
ACCESS TO INCLUSIVE SUPPORTS AND

3460
02:32:16,188 --> 02:32:21,226
SERVICES TO ATTAIN AND MAINTAIN 

3461
02:32:21,226 --> 02:32:22,661
EMPLOYMENT AND ADVANCING CAREERS

3462
02:32:22,661 --> 02:32:24,162
AND CAREER PATHWAYS FOR AUTISTIC

3463
02:32:24,162 --> 02:32:26,732
PEOPLE AND ESPECIALLY THE IMPACT

3464
02:32:26,732 --> 02:32:31,470
OF FOCUSES LIKE BURNOUT UNDER 

3465
02:32:31,470 --> 02:32:34,673
STUDIED IN THE RESEARCH AND NEED

3466
02:32:34,673 --> 02:32:36,274
TO BE HIGHLIGHTED MORE BECAUSE 

3467
02:32:36,274 --> 02:32:37,743
IT KEEPS AUTISTIC PEOPLE FROM 

3468
02:32:37,743 --> 02:32:40,212
BEING ABLE TO HAVE FULL ACCESS 

3469
02:32:40,212 --> 02:32:42,314
TO GAINFUL EMPLOYMENT.

3470
02:32:42,314 --> 02:32:43,348
THIS SUPPORTS ECONOMIC 

3471
02:32:43,348 --> 02:32:44,549
PROSPERITY AND HIGH QUALITY OF 

3472
02:32:44,549 --> 02:32:44,816
LIFE.

3473
02:32:44,816 --> 02:32:50,222
I'M GLAD THIS WAS HIGHLIGHTED BY

3474
02:32:50,222 --> 02:32:52,224
PUBLIC COMMENTERS AND WE TAKE 

3475
02:32:52,224 --> 02:32:54,359
THIS TO HEART AT THE 

3476
02:32:54,359 --> 02:32:55,660
U.S. DEPARTMENT OF LABOR.

3477
02:32:55,660 --> 02:32:56,595
>> THANK YOU, SCOTT.

3478
02:32:56,595 --> 02:32:59,965
IVANOVA.

3479
02:32:59,965 --> 02:33:06,004
>> THIS IS IVANOVA.

3480
02:33:06,004 --> 02:33:07,572
I ALSO WANT TO SAY THANK YOU TO 

3481
02:33:07,572 --> 02:33:09,708
CHERYL AND HER SON.

3482
02:33:09,708 --> 02:33:11,576
I THINK IT'S IMPORTANT IN 

3483
02:33:11,576 --> 02:33:15,247
LOOKING AT WHAT HAPPENED IN THAT

3484
02:33:15,247 --> 02:33:17,949
SITUATION IS NOT ONE SIZE FITS 

3485
02:33:17,949 --> 02:33:20,585
ALL WITH PUBLIC HEALTH POLICY.

3486
02:33:20,585 --> 02:33:24,222
OR ANY POLICY THAT AFFECTS 

3487
02:33:24,222 --> 02:33:26,391
SERVICES FOR PEOPLE WITH , 

3488
02:33:26,391 --> 02:33:28,260
INTELLECTUAL DISABILITY OR ANY 

3489
02:33:28,260 --> 02:33:30,428
OTHER CO-OCCURRING CONDITIONS.

3490
02:33:30,428 --> 02:33:32,731
WE REALLY NEED TO MAKE SURE THAT

3491
02:33:32,731 --> 02:33:36,668
WHEN WE'RE MAKING PUBLIC HEALTH 

3492
02:33:36,668 --> 02:33:39,037
POLICY THAT WE'RE HONORING THAT 

3493
02:33:39,037 --> 02:33:43,575
NOT EVERYONE CAN DO THE SAME 

3494
02:33:43,575 --> 02:33:44,609
THING AND THAT PROVIDERS STILL 

3495
02:33:44,609 --> 02:33:48,713
NEED TO BE THERE FOR THE PEOPLE 

3496
02:33:48,713 --> 02:33:49,815
THEY SERVE AND ISOLATING PEOPLE 

3497
02:33:49,815 --> 02:33:52,150
HURTS PEOPLE.

3498
02:33:52,150 --> 02:33:55,854
I REALLY HOPE WE REFLECT ON THAT

3499
02:33:55,854 --> 02:33:57,622
AND MAKE SURE WHEN WE'RE TALKING

3500
02:33:57,622 --> 02:34:03,195
ABOUT SERVICES FOR PEOPLE WITH 

3501
02:34:03,195 --> 02:34:06,865
DISABILITIES, AND PUBLIC HEALTH 

3502
02:34:06,865 --> 02:34:12,537
THAT WE'RE NOT DEMANDING A ONE 

3503
02:34:12,537 --> 02:34:14,239
SIZE FITS ALL BUT BUT A POLICY 

3504
02:34:14,239 --> 02:34:15,574
THAT WORKS FOR DIFFERENT PEOPLE 

3505
02:34:15,574 --> 02:34:19,578
AND HAS UNDERSTANDING THAT WE 

3506
02:34:19,578 --> 02:34:23,582
ALL NEED DIFFERENT THINGS AND 

3507
02:34:23,582 --> 02:34:25,884
DIFFERENT AUTONOMIES WHEN IT 

3508
02:34:25,884 --> 02:34:27,552
COMES TO PUBLIC HEALTH.

3509
02:34:27,552 --> 02:34:30,655
I WANT TO ECHO THAT AND I'M SAD 

3510
02:34:30,655 --> 02:34:32,724
AND SORRY FOR WHAT HAPPENED TO 

3511
02:34:32,724 --> 02:34:35,727
CHERYL'S SON AND OTHERS WHO HAVE

3512
02:34:35,727 --> 02:34:37,295
GONE THROUGH THAT.

3513
02:34:37,295 --> 02:34:42,500
I'VE LOST SEVERAL FRIENDS THAT 

3514
02:34:42,500 --> 02:34:45,704
ARE SELF-ADVOCATES WHO WERE ALSO

3515
02:34:45,704 --> 02:34:46,271
RESTRICTED AND PASSED AWAY 

3516
02:34:46,271 --> 02:34:56,181
DURING THIS TIME.

3517
02:34:56,181 --> 02:34:59,084
HEARING YOUR STORY ENCOURAGES 

3518
02:34:59,084 --> 02:34:59,251
ME.

3519
02:34:59,251 --> 02:34:59,517
THANK YOU.

3520
02:34:59,517 --> 02:34:59,851
>> THANK YOU.

3521
02:34:59,851 --> 02:35:02,587
JENNY.

3522
02:35:02,587 --> 02:35:12,097
>> THIS IS JENNY MEI PHAN
I ECHO

3523
02:35:12,097 --> 02:35:17,402
WHAT COLLEAGUES HAVE STATED 

3524
02:35:17,402 --> 02:35:18,036
ABOUT PUBLIC COMMENT AND THANK 

3525
02:35:18,036 --> 02:35:19,571
YOU CHERYL AND IT RESONATES 

3526
02:35:19,571 --> 02:35:21,806
BECAUSE WE'RE A MILITARY FAMILY 

3527
02:35:21,806 --> 02:35:23,642
TOO AND HAVE HAD TO EXPERIENCE 

3528
02:35:23,642 --> 02:35:26,878
GAPS IN SUPPORTS AND SERVICES.

3529
02:35:26,878 --> 02:35:31,449
BEING A MILITARY FAMILY AMONG 

3530
02:35:31,449 --> 02:35:33,818
MANY OTHER HATS THAT WE WEAR 

3531
02:35:33,818 --> 02:35:38,790
THANK YOU FOR SHARING AND I WANT

3532
02:35:38,790 --> 02:35:44,629
TO ACTUALLY BRING UP ANGIE'S 

3533
02:35:44,629 --> 02:35:46,531
COMMENTS FOR WRITING IN AND KEEP

3534
02:35:46,531 --> 02:35:47,599
WRITING IN IF IT'S NOT GETTING 

3535
02:35:47,599 --> 02:35:52,504
ENOUGH ATTENTION.

3536
02:35:52,504 --> 02:35:54,706
ANGIE BROUGHT UP AUTISM WAIVERS 

3537
02:35:54,706 --> 02:35:55,974
MANY STATES HAVE UNDER MEDICAID 

3538
02:35:55,974 --> 02:36:00,111
AND AS WE ALL KNOW MANY OF OUR 

3539
02:36:00,111 --> 02:36:01,980
KIDS WHO ARE AUTISTIC ARE TRYING

3540
02:36:01,980 --> 02:36:03,415
AT LEAST THEIR FAMILIES ARE 

3541
02:36:03,415 --> 02:36:05,283
TRYING TO GET THEM ON THE AUTISM

3542
02:36:05,283 --> 02:36:06,952
WAIVER AND SITTING ON WAITING 

3543
02:36:06,952 --> 02:36:07,152
LISTS.

3544
02:36:07,152 --> 02:36:09,054
MY FAMILY INCLUDED.

3545
02:36:09,054 --> 02:36:10,822
WE WERE TOLD THAT WE WILL BE ON 

3546
02:36:10,822 --> 02:36:13,291
A NINE-YEAR WAITING LIST AND MY 

3547
02:36:13,291 --> 02:36:15,727
SON IS 13 YEARS OLD.

3548
02:36:15,727 --> 02:36:19,164
BY THE TIME HE IS ABLE TO GET ON

3549
02:36:19,164 --> 02:36:20,365
TO THE WAIVER HE'LL AGE OUT AND 

3550
02:36:20,365 --> 02:36:22,167
I THINK WE'RE NOT ALONE.

3551
02:36:22,167 --> 02:36:24,169
MANY FAMILIES ARE LIKE THIS.

3552
02:36:24,169 --> 02:36:26,471
I LIVE IN MARYLAND NOW IN 

3553
02:36:26,471 --> 02:36:27,706
FREDERICK COUNTY AND MY KIDS ARE

3554
02:36:27,706 --> 02:36:30,442
IN FREDERICK COUNTY PUBLIC 

3555
02:36:30,442 --> 02:36:31,209
SCHOOLS.

3556
02:36:31,209 --> 02:36:34,279
SO ANGIE PLEASE REACH OUT.

3557
02:36:34,279 --> 02:36:35,180
WE MOVED A LOT.

3558
02:36:35,180 --> 02:36:37,415
WE MOVED FROM LOUISIANA TO IOWA 

3559
02:36:37,415 --> 02:36:43,388
TO WISCONSIN AND THEN MARYLAND.

3560
02:36:43,388 --> 02:36:46,658
AND EVERY STATE HAS WAIVER TO 

3561
02:36:46,658 --> 02:36:47,792
GET KIDS ON MEDICAID AND EVERY 

3562
02:36:47,792 --> 02:36:49,427
STATE HAS A DIFFERENT TIME ON 

3563
02:36:49,427 --> 02:36:49,928
WAITING LIST.

3564
02:36:49,928 --> 02:36:54,099
WISCONSIN WAS THE FASTEST.

3565
02:36:54,099 --> 02:36:58,136
WE GOT THREE MONTHS INTO 

3566
02:36:58,136 --> 02:36:59,104
MEDICAID.

3567
02:36:59,104 --> 02:37:00,939
THAT WAS THE QUICKEST ON TO 

3568
02:37:00,939 --> 02:37:02,640
MEDICAID AND NOW WE'RE BACK ON 

3569
02:37:02,640 --> 02:37:04,342
THE WAITING LIST AND WE'RE NOT 

3570
02:37:04,342 --> 02:37:07,912
ABLE TO ACCESS SUPPORTS AND 

3571
02:37:07,912 --> 02:37:08,179
SERVICES.

3572
02:37:08,179 --> 02:37:10,682
SO TO AMANDA'S COMMENT ABOUT 

3573
02:37:10,682 --> 02:37:13,618
CROSS-COORDINATION OF SERVICES 

3574
02:37:13,618 --> 02:37:17,555
AND FUNDING, I ECHO AND AGREE 

3575
02:37:17,555 --> 02:37:22,127
THAT THERE NEEDS TO BE BETTER 

3576
02:37:22,127 --> 02:37:25,263
CONVERSATIONS AND COLLABORATIONS

3577
02:37:25,263 --> 02:37:25,897
ACROSS AGENCIES AND PROVIDERS 

3578
02:37:25,897 --> 02:37:31,403
WHEREVER WE ARE.

3579
02:37:31,403 --> 02:37:33,538
BUT THERE'S A LOT OF KIDS WHO 

3580
02:37:33,538 --> 02:37:36,107
CANNOT EVEN GET ON MEDICAID TO 

3581
02:37:36,107 --> 02:37:38,009
GET SUPPORT AND SERVICE AND ON 

3582
02:37:38,009 --> 02:37:38,910
WAITING LISTS.

3583
02:37:38,910 --> 02:37:41,179
WHAT ARE THEY DOING AND WAITING 

3584
02:37:41,179 --> 02:37:42,013
FOR?

3585
02:37:42,013 --> 02:37:46,084
THEY'RE NOT GETTING ANY 

3586
02:37:46,084 --> 02:37:47,152
SUPPORTS.

3587
02:37:47,152 --> 02:37:57,362
THIS IS OF A -- THIS IS SUCH A 

3588
02:37:57,362 --> 02:37:58,063
CONCERN AND NEED MORE DISCUSSION

3589
02:37:58,063 --> 02:37:59,597
ON THIS AS A COMMITTEE.

3590
02:37:59,597 --> 02:38:05,370
>> TWO MORE COMMENTS PAUL
AND 

3591
02:38:05,370 --> 02:38:14,112
LIND

3592
02:38:14,112 --> 02:38:14,746
LINDSEY.

3593
02:38:14,746 --> 02:38:18,083
>> THERE'S ENORMOUS ISSUES
WITH 

3594
02:38:18,083 --> 02:38:19,584
THE ACCESSIBILITY OF SUPPORTS 

3595
02:38:19,584 --> 02:38:21,319
NEEDED AND CAPACITY.

3596
02:38:21,319 --> 02:38:22,587
THERE JUST AREN'T ENOUGH OF 

3597
02:38:22,587 --> 02:38:23,588
THOSE RESOURCES AND SUPPORTS 

3598
02:38:23,588 --> 02:38:25,323
THAT ARE NEEDED.

3599
02:38:25,323 --> 02:38:27,125
ONE SMALL PART I WANT TO DRAW 

3600
02:38:27,125 --> 02:38:31,563
ATTENTION TO IS THE PEDIATRIC 

3601
02:38:31,563 --> 02:38:35,166
SUBSPECIALTY WORKFORCE AND A 

3602
02:38:35,166 --> 02:38:38,002
REPORT FROM THE NATIONAL 

3603
02:38:38,002 --> 02:38:41,506
ACADEMIES REPORT THERE'S NOT 

3604
02:38:41,506 --> 02:38:46,077
ENOUGH DEVELOPMENTAL BEHAVIORAL 

3605
02:38:46,077 --> 02:38:50,014
PEDIATRICS AND THEY'RE NOT 

3606
02:38:50,014 --> 02:38:51,149
FAIRLY COMPENSATED SO PEOPLE 

3607
02:38:51,149 --> 02:38:53,118
DON'T GO IN THOSE FIELDS.

3608
02:38:53,118 --> 02:38:54,953
WHO PARTICULAR RECOMMENDATIONS 

3609
02:38:54,953 --> 02:38:56,421
IN THE NATIONAL ACADEMY REPORT 

3610
02:38:56,421 --> 02:38:58,957
IS NUMBER ONE, MEDICAID NEEDS TO

3611
02:38:58,957 --> 02:38:59,624
BE REIMBURSED AT THE SAME LEVEL 

3612
02:38:59,624 --> 02:39:02,961
AS MEDICARE.

3613
02:39:02,961 --> 02:39:06,264
PEOPLE AREN'T AWARE MEDICAID 

3614
02:39:06,264 --> 02:39:09,601
PAYMENT A FRACTION OF WHAT 

3615
02:39:09,601 --> 02:39:11,169
MEDICARE PAYMENTS ARE.

3616
02:39:11,169 --> 02:39:13,838
IT'S NOT THE FAULT OF CMS, 

3617
02:39:13,838 --> 02:39:18,977
CONGRESS MUST APPROPRIATE THOSE 

3618
02:39:18,977 --> 02:39:23,848
FUNDS SO EVEN STEVEN 

3619
02:39:23,848 --> 02:39:24,549
REIMBURSEMENT PHYSICIAN SERVICES

3620
02:39:24,549 --> 02:39:27,252
CAN BE MADE AND THE SO-CALLED 

3621
02:39:27,252 --> 02:39:29,287
RELATIVE VALUE SYSTEM WHICH IS 

3622
02:39:29,287 --> 02:39:30,822
SO CORRUPT IS CALLED OUT IN THE 

3623
02:39:30,822 --> 02:39:35,960
NATIONAL ACADEMY REPORT.

3624
02:39:35,960 --> 02:39:37,228
IT MUST BE THOROUGHLY REVISED SO

3625
02:39:37,228 --> 02:39:39,564
THE NEEDED SERVICE VALUED AND 

3626
02:39:39,564 --> 02:39:43,768
THEREFORE REIMBURSED AN A FAIR 

3627
02:39:43,768 --> 02:39:43,935
WAY.

3628
02:39:43,935 --> 02:39:47,672
>> THANK YOU, PAUL.

3629
02:39:47,672 --> 02:39:50,375
LINDSEY.

3630
02:39:50,375 --> 02:39:55,580
>> I WANT TO THANK CHERYL
FOR 

3631
02:39:55,580 --> 02:40:00,618
SHARING HER TESTIMONY.

3632
02:40:00,618 --> 02:40:01,586
I CAN ONLY IMAGINE HOW DIFFICULT

3633
02:40:01,586 --> 02:40:05,089
IT WAS TO GET UP AND SPEAK AND 

3634
02:40:05,089 --> 02:40:07,125
IT'S HEARTBREAKING AND SOBERING 

3635
02:40:07,125 --> 02:40:08,092
REMINDER IT'S AN ISSUE WE NEED 

3636
02:40:08,092 --> 02:40:10,028
TO BRING MORE TO LIGHT.

3637
02:40:10,028 --> 02:40:12,697
AS A SIBLING WHO HAS HAD TO 

3638
02:40:12,697 --> 02:40:14,732
SPEND AN ENTIRE LIFE TIME 

3639
02:40:14,732 --> 02:40:17,302
ADVOCATING FOR A NON-SPEAKING 

3640
02:40:17,302 --> 02:40:18,203
AUTISTIC BROTHER WITH HIGH 

3641
02:40:18,203 --> 02:40:20,205
SUPPORT NEEDS TO BE CONNECTED TO

3642
02:40:20,205 --> 02:40:22,373
ADEQUATE HEALTH SERVICES, THE 

3643
02:40:22,373 --> 02:40:25,310
STORY HITS HOME TO ME.

3644
02:40:25,310 --> 02:40:27,045
NO ONE IN OUR COMMUNITY SHOULD 

3645
02:40:27,045 --> 02:40:28,580
HAVE TO GO THROUGH WHAT CHERYL 

3646
02:40:28,580 --> 02:40:31,583
AND HER FAMILY HAS HAD TO GO 

3647
02:40:31,583 --> 02:40:32,016
THROUGH.

3648
02:40:32,016 --> 02:40:37,088
IT'S IMPORTANT THAT WE REMEMBER 

3649
02:40:37,088 --> 02:40:38,856
FAMILIES LIKE HER AND OTHER 

3650
02:40:38,856 --> 02:40:40,425
ADVOCATES GOING THROUGH SIMILAR 

3651
02:40:40,425 --> 02:40:40,658
ISSUES.

3652
02:40:40,658 --> 02:40:42,760
WHEN WE CONTINUE OUR DISCUSSION 

3653
02:40:42,760 --> 02:40:43,861
ON AUTISM AND MENTAL HEALTH 

3654
02:40:43,861 --> 02:40:46,397
RESEARCH AND SERVICES NOT ONLY 

3655
02:40:46,397 --> 02:40:48,766
DO WE NEED TO FOCUS ON EXPANDING

3656
02:40:48,766 --> 02:40:51,236
AND IMPROVING MENTAL HEALTH 

3657
02:40:51,236 --> 02:40:54,939
SERVICES TAILORED TO THE NEEDS 

3658
02:40:54,939 --> 02:40:56,341
OF THE AUTISM COMMUNITY BUT WE 

3659
02:40:56,341 --> 02:40:58,576
ALSO NEED TO FOCUS ON EDUCATING 

3660
02:40:58,576 --> 02:40:59,577
AND EXPANDING OUR OUTREACH 

3661
02:40:59,577 --> 02:41:02,013
EFFORTS IN INFORMING THE PUBLIC 

3662
02:41:02,013 --> 02:41:04,682
ON WHAT INFORMATION RESOURCES 

3663
02:41:04,682 --> 02:41:07,585
AND SUPPORTS DO CURRENTLY EXIST 

3664
02:41:07,585 --> 02:41:09,787
FOR FAMILIES AND SELF-ADVOCATES.

3665
02:41:09,787 --> 02:41:12,690
SO TO REITERATE HER WRITTEN 

3666
02:41:12,690 --> 02:41:13,992
REMARKS, WE NEED TO URGE OUR 

3667
02:41:13,992 --> 02:41:15,560
MEDICAL COMMUNITIES TO HELP 

3668
02:41:15,560 --> 02:41:17,829
ADDRESS AND FIX THIS PROCESS.

3669
02:41:17,829 --> 02:41:21,532
SO NO OTHER FAMILY OR INDIVIDUAL

3670
02:41:21,532 --> 02:41:23,434
HAS TO SUFFER THROUGH THIS.

3671
02:41:23,434 --> 02:41:24,636
THAT'S ALL I HAVE TO SAY.

3672
02:41:24,636 --> 02:41:24,902
THANK YOU.

3673
02:41:24,902 --> 02:41:26,971
>> THANK YOU, LINDSEY.

3674
02:41:26,971 --> 02:41:33,544
TO CLOSE OUT THE PUBLIC COMMENTS

3675
02:41:33,544 --> 02:41:36,247
WE'RE GOING TO HAVE TO READ THE 

3676
02:41:36,247 --> 02:41:38,349
ORAL COMMENTS FROM NICOLE 

3677
02:41:38,349 --> 02:41:41,352
CORRADO WHO TONS HAVE CHALLENGES

3678
02:41:41,352 --> 02:41:43,888
CONNECTING TO US.

3679
02:41:43,888 --> 02:41:47,592
>> WE'LL HAVE A SUMMARY OF
HER 

3680
02:41:47,592 --> 02:41:48,293
COMMENTS.

3681
02:41:48,293 --> 02:41:49,761
>> GOOD AFTERNOON,
EVERYONE.

3682
02:41:49,761 --> 02:41:51,562
THESE COMMENTS ARE FROM NICOLE 

3683
02:41:51,562 --> 02:41:52,964
CORRADO ON THE SUBJECT OF MOVING

3684
02:41:52,964 --> 02:41:55,700
OUT AS AN AUTISTIC ADULT.

3685
02:41:55,700 --> 02:41:57,568
SHE SAYS I LIKE MANY ADULTS HAVE

3686
02:41:57,568 --> 02:41:59,370
WANTED TO MOVE OUT INDEPENDENTLY

3687
02:41:59,370 --> 02:42:01,639
TO MY OWN HOME AS AN AUTISTIC 

3688
02:42:01,639 --> 02:42:03,474
PERSON THIS WAS HARDER TO DO AND

3689
02:42:03,474 --> 02:42:04,609
THE AVERAGE PERSON.

3690
02:42:04,609 --> 02:42:07,612
I WAS ON ODSP WHICH IS A 

3691
02:42:07,612 --> 02:42:09,013
DISABILITY SUPPORT PROGRAM, 

3692
02:42:09,013 --> 02:42:10,448
UNEMPLOYED AND LIVING WITH MY 

3693
02:42:10,448 --> 02:42:11,582
PARENTS AND SIBLINGS.

3694
02:42:11,582 --> 02:42:15,853
I HAD LIVED IN TORONTO ALL MY 

3695
02:42:15,853 --> 02:42:18,389
LIFE BUT FOUND TORONTO TO BE 

3696
02:42:18,389 --> 02:42:20,191
BUSY AND WANTED TO BE SOMEWHERE 

3697
02:42:20,191 --> 02:42:21,626
ELSEWHERE I DIDN'T HAVE BAGGAGE 

3698
02:42:21,626 --> 02:42:23,561
FROM MY PAST AND MOVING TO 

3699
02:42:23,561 --> 02:42:26,331
ANOTHER CITY FELT LIKE THE ONLY 

3700
02:42:26,331 --> 02:42:27,932
WAY TO MOVE FORWARD.

3701
02:42:27,932 --> 02:42:30,768
IT WAS DIFFICULT TO FIND 

3702
02:42:30,768 --> 02:42:31,569
ANYTHING AFFORDABLE IN TORONTO 

3703
02:42:31,569 --> 02:42:33,604
AND FOUND SOMETHING IN QUÉBEC.

3704
02:42:33,604 --> 02:42:36,441
IT FEELS DIFFERENT FROM WHERE I 

3705
02:42:36,441 --> 02:42:38,409
USED TO LIVE WHICH FURTHER 

3706
02:42:38,409 --> 02:42:40,278
DISTANCES MYSELF FROM NEGATIVE 

3707
02:42:40,278 --> 02:42:44,349
ASSOCIATIONS WITH MY HOMETOWN.

3708
02:42:44,349 --> 02:42:45,616
THE FIRST APARTMENT I MOVED TO 

3709
02:42:45,616 --> 02:42:47,952
DID NOT WORK OUT DUE TO PERSONAL

3710
02:42:47,952 --> 02:42:48,219
STRESSES.

3711
02:42:48,219 --> 02:42:50,688
MY PARENTS LATER FOUND A 

3712
02:42:50,688 --> 02:42:52,357
BASEMENT APARTMENT ON FACEBOOK 

3713
02:42:52,357 --> 02:42:54,258
MARKETPLACE IN A RESIDENTIAL 

3714
02:42:54,258 --> 02:42:55,526
NEIGHBORHOOD THAT WAS OWNED BY A

3715
02:42:55,526 --> 02:42:57,628
LAID BACK PERSON WHO LIVES 

3716
02:42:57,628 --> 02:42:57,895
UPSTAIRS.

3717
02:42:57,895 --> 02:42:59,297
HAVING LESS PEOPLE INVOLVED IN 

3718
02:42:59,297 --> 02:43:01,099
THE RENTAL PROCESS WAS KEY TO 

3719
02:43:01,099 --> 02:43:01,899
SUCCESS.

3720
02:43:01,899 --> 02:43:03,568
CONNECTING WITH THE RIGHT PEOPLE

3721
02:43:03,568 --> 02:43:05,603
ALLOWS ME TO ACCESS SUPPORT WHEN

3722
02:43:05,603 --> 02:43:07,138
I NEED IT.

3723
02:43:07,138 --> 02:43:07,839
I LIVE FIVE MINUTES FROM 

3724
02:43:07,839 --> 02:43:11,242
RELATIVES WHO CAN SUPPORT ME.

3725
02:43:11,242 --> 02:43:12,643
BEING INDEPENDENT FROM MY 

3726
02:43:12,643 --> 02:43:15,113
PARENTS INVOLVES BEING 

3727
02:43:15,113 --> 02:43:19,016
INTERDEPENDENT WITH CARE 

3728
02:43:19,016 --> 02:43:20,118
NEIGHBORS SOME OF WHOM ARE 

3729
02:43:20,118 --> 02:43:21,619
NEURODIVERGENT THEMSELVES AND 

3730
02:43:21,619 --> 02:43:22,553
WALK EVERYONE AND HAVING 

3731
02:43:22,553 --> 02:43:23,755
EVERYTHING CLOSE IS CONVENIENT.

3732
02:43:23,755 --> 02:43:25,456
FOR THE MOST PART I FIND LIVING 

3733
02:43:25,456 --> 02:43:27,291
ON MY OWN EXCITING AND 

3734
02:43:27,291 --> 02:43:27,558
REWARDING.

3735
02:43:27,558 --> 02:43:29,861
I ENJOY GETTING TO KNOW MY 

3736
02:43:29,861 --> 02:43:31,562
NEIGHBORS AND FOUND AN ACCEPTING

3737
02:43:31,562 --> 02:43:34,031
CHURCH TO ATTEND.

3738
02:43:34,031 --> 02:43:35,099
MEAL PLANNING IS A BIT OF A 

3739
02:43:35,099 --> 02:43:37,168
CHALLENGE AS I HAVE TROUBLE WITH

3740
02:43:37,168 --> 02:43:39,370
MONEY AND OFTEN OVERSPEND AT THE

3741
02:43:39,370 --> 02:43:41,372
FARMER'S MARKET BUT I FIND THE 

3742
02:43:41,372 --> 02:43:44,776
OUTDOOR FARMER'S MARKET LESS 

3743
02:43:44,776 --> 02:43:45,743
OVERWHELMING THAN CONVENTIONAL 

3744
02:43:45,743 --> 02:43:46,310
GROCERY STORES.

3745
02:43:46,310 --> 02:43:48,246
MY PARENTS STILL DRIVE IN FROM 

3746
02:43:48,246 --> 02:43:50,715
TORONTO AND BRING ME GROCERIES 

3747
02:43:50,715 --> 02:43:52,417
AND OTHER ESSENTIALS THOUGH I 

3748
02:43:52,417 --> 02:43:54,752
WOULD LIKE TO GET EXECUTIVE 

3749
02:43:54,752 --> 02:43:55,820
FUNCTIONING SUPPORT AND SHOPPING

3750
02:43:55,820 --> 02:43:57,822
WITH A FRIEND OR NEIGHBOR FROM 

3751
02:43:57,822 --> 02:43:58,055
CHURCH.

3752
02:43:58,055 --> 02:43:59,590
STILL NEED TO FIND A SOURCE OF 

3753
02:43:59,590 --> 02:44:01,793
INCOME AS I NO LONGER ON ODSP 

3754
02:44:01,793 --> 02:44:04,362
AND RELYING ON MY PARENTS TO PAY

3755
02:44:04,362 --> 02:44:07,198
THE RENT, GROCERIES, TOILETRIES 

3756
02:44:07,198 --> 02:44:08,332
AND OTHER ESSENTIALS.

3757
02:44:08,332 --> 02:44:10,501
FINDING A JOB AND SUPPLEMENTING 

3758
02:44:10,501 --> 02:44:12,069
IT WITH DISABILITY PAY WOULD 

3759
02:44:12,069 --> 02:44:13,971
TAKE SOME OF THE BURDEN OFF MY 

3760
02:44:13,971 --> 02:44:14,972
PARENTS.

3761
02:44:14,972 --> 02:44:16,374
I STILL HAVE ISSUES WITH KEEPING

3762
02:44:16,374 --> 02:44:18,142
A GOOD SCHEDULE SINCE I DON'T 

3763
02:44:18,142 --> 02:44:19,644
HAVE ANOTHER PERSON KEEPING ME 

3764
02:44:19,644 --> 02:44:20,878
ON TASK.

3765
02:44:20,878 --> 02:44:22,079
TRANSITIONS FROM WAKE TO 

3766
02:44:22,079 --> 02:44:23,181
SLEEPING AT NIGHT AND FROM 

3767
02:44:23,181 --> 02:44:23,748
SLEEPING TO WAKING IN THE 

3768
02:44:23,748 --> 02:44:25,983
MORNING IS HARD.

3769
02:44:25,983 --> 02:44:28,986
I HAVE BEEN WALKING TO A DAILY 

3770
02:44:28,986 --> 02:44:30,321
CHURCH SERVICE.

3771
02:44:30,321 --> 02:44:32,089
IT KEEPS A ROUTINE AND SOCIAL 

3772
02:44:32,089 --> 02:44:34,091
AND REDUCES MY ANXIETY.

3773
02:44:34,091 --> 02:44:35,560
THE DAILY EXERCISE IN THE 

3774
02:44:35,560 --> 02:44:37,128
MORNING REMOVE SOME OF THE 

3775
02:44:37,128 --> 02:44:38,863
STRESS I EXPERIENCE FROM THE 

3776
02:44:38,863 --> 02:44:40,231
TRANSITION TO LIVING ALONE.

3777
02:44:40,231 --> 02:44:41,933
CREATING A ROUTINE AND 

3778
02:44:41,933 --> 02:44:43,301
DEVELOPING GOOD TIME MANAGEMENT 

3779
02:44:43,301 --> 02:44:44,969
IS SOMETHING I'M WORKING ON.

3780
02:44:44,969 --> 02:44:47,138
I HOPE TO CONTINUE TO MAKE 

3781
02:44:47,138 --> 02:44:48,072
CONNECTIONS WITH THE COMMUNITY 

3782
02:44:48,072 --> 02:44:52,877
AS I SETTLE INTO MY NEW LIVING 

3783
02:44:52,877 --> 02:44:55,580
ARRANGEMENT AS AN INDEPENDENT 

3784
02:44:55,580 --> 02:44:56,147
ADULT.

3785
02:44:56,147 --> 02:44:59,150
>> THANK YOU VERY MUCH,
MS. 

3786
02:44:59,150 --> 02:44:59,383
CORRADO.

3787
02:44:59,383 --> 02:45:00,485
HOPEFULLY YOU CAN HEAR THIS 

3788
02:45:00,485 --> 02:45:05,456
THROUGH THE VIDEOCAST.

3789
02:45:05,456 --> 02:45:08,326
THANK YOU FOR READING THE 

3790
02:45:08,326 --> 02:45:08,593
COMMENTS.

3791
02:45:08,593 --> 02:45:11,896
WE'LL TRANSITION TO OUR NEXT 

3792
02:45:11,896 --> 02:45:13,631
AGENDA ITEM AND WE WERE GOING TO

3793
02:45:13,631 --> 02:45:15,733
TAKE A FIVE MINUTE BREAK AND 

3794
02:45:15,733 --> 02:45:19,604
WE'LL TAKE A BREAK IN THE MIDST 

3795
02:45:19,604 --> 02:45:20,204
OF THE AFTERNOON.

3796
02:45:20,204 --> 02:45:25,109
SO I WANT TO THANK EVERYONE FOR 

3797
02:45:25,109 --> 02:45:29,514
THEIR WONDERFUL DISCUSSION AND 

3798
02:45:29,514 --> 02:45:31,282
REMARK ON BEHALF OF THE 

3799
02:45:31,282 --> 02:45:33,584
COMMITTEE THAT CLEARLY COMMITTEE

3800
02:45:33,584 --> 02:45:34,819
MEMBERS' REMARKS DURING THAT 

3801
02:45:34,819 --> 02:45:37,855
DISCUSSION MAKE IT CLEAR THE 

3802
02:45:37,855 --> 02:45:40,625
WRITTEN COMMENTS OVER THERE NOT 

3803
02:45:40,625 --> 02:45:42,793
ALL READ ALOUD AS MS. CORRADO'S 

3804
02:45:42,793 --> 02:45:45,563
ARE POURED OVER BY MEMBERS OF 

3805
02:45:45,563 --> 02:45:47,565
THE COMMITTEE AND TAKEN QUITE 

3806
02:45:47,565 --> 02:45:48,032
SERIOUSLY.

3807
02:45:48,032 --> 02:45:53,838
WE'RE NOW GOING TO MOVE TO FOCUS

3808
02:45:53,838 --> 02:45:56,040
ON AUTISM MENTAL HEALTH AND 

3809
02:45:56,040 --> 02:45:57,808
MENTAL HEALTH ON AUTISM.

3810
02:45:57,808 --> 02:46:07,118
WE'RE GO TO HAVE TWO SEGMENTS.

3811
02:46:07,118 --> 02:46:07,385
THREE.

3812
02:46:07,385 --> 02:46:08,653
THE FIRST ON MENTAL HEALTH 

3813
02:46:08,653 --> 02:46:10,888
RESEARCH AND THE SECOND ON 

3814
02:46:10,888 --> 02:46:13,024
COMMUNITY PERSPECTIVES AND ON 

3815
02:46:13,024 --> 02:46:13,991
MENTAL HEALTH NEEDS AND THE 

3816
02:46:13,991 --> 02:46:17,895
THIRD ON MENTAL HEALTH SERVICES.

3817
02:46:17,895 --> 02:46:26,003
JOINING US FOR THE FIRST SESSION

3818
02:46:26,003 --> 02:46:30,675
IS DOCTORS MAZEFSKY AND 

3819
02:46:30,675 --> 02:46:34,879
PROFESSOR OF PSYCHIATRY AT THE 

3820
02:46:34,879 --> 02:46:38,349
UNIVERSITY OF PITTSBURGH.

3821
02:46:38,349 --> 02:46:43,087
DR. MATTHEW SIEGEL FROM TUFT'S 

3822
02:46:43,087 --> 02:46:45,389
UNIVERSITY SCHOOL OF MEDICINE 

3823
02:46:45,389 --> 02:46:49,927
AND MEMBER OF OUR COMMITTEE AND 

3824
02:46:49,927 --> 02:46:52,463
DR. McDONELL AT THE UNIVERSITY 

3825
02:46:52,463 --> 02:46:56,567
OF WYOMING AND DR. KELLY BECK 

3826
02:46:56,567 --> 02:46:58,202
PROFESSOR OF PSYCHIATRY ALSO AT 

3827
02:46:58,202 --> 02:46:58,970
THE UNIVERSITY OF PITTSBURGH.

3828
02:46:58,970 --> 02:47:04,175
THANK YOU THE FOUR OF YOU FOR 

3829
02:47:04,175 --> 02:47:05,910
JOINING US AND DR. MAZEFSKY 

3830
02:47:05,910 --> 02:47:07,945
YOU'LL START US OFF AND SORRY IF

3831
02:47:07,945 --> 02:47:10,147
I'M BUTCHERING YOUR NAME.

3832
02:47:10,147 --> 02:47:11,182
NOT GOOD WITH NAMES TODAY.

3833
02:47:11,182 --> 02:47:11,816
>> THANK YOU SO MUCH FOR
HAVING 

3834
02:47:11,816 --> 02:47:21,892
ME.

3835
02:48:06,203 --> 02:48:12,109
 I THINK WE'VE GOT IT.

3836
02:48:12,109 --> 02:48:14,578
I THOUGHT I'D START BY GETTING 

3837
02:48:14,578 --> 02:48:16,080
US ON THE SAME PAGE ABOUT WHAT 

3838
02:48:16,080 --> 02:48:17,748
WE'RE TALKING ABOUT WHEN WE SAY 

3839
02:48:17,748 --> 02:48:18,516
MENTAL HEALTH.

3840
02:48:18,516 --> 02:48:21,585
OF COURSE WE THINK ABOUT 

3841
02:48:21,585 --> 02:48:26,424
CO-OCCURRING PSYCHIATRIC 

3842
02:48:26,424 --> 02:48:26,924
CONDITIONS.

3843
02:48:26,924 --> 02:48:29,860
DIAGNOSED DISORDERS AND I THINK 

3844
02:48:29,860 --> 02:48:32,630
WE WANT TO INCLUDE ASPECTS OF 

3845
02:48:32,630 --> 02:48:34,098
EMOTIONAL AND BEHAVIORAL WELL 

3846
02:48:34,098 --> 02:48:37,268
BEING AND SOME WILL BE EMOTION 

3847
02:48:37,268 --> 02:48:37,868
DYSREGULATION, SELF-INJURY, 

3848
02:48:37,868 --> 02:48:45,276
SUICIDALITY AND TRAUMA.

3849
02:48:45,276 --> 02:48:47,244
HOW COMMON ARE PSYCHIATRIC 

3850
02:48:47,244 --> 02:48:48,345
CONDITIONS IN AUTISM?

3851
02:48:48,345 --> 02:48:50,614
I DEBATED WHAT I WAS GOING TO 

3852
02:48:50,614 --> 02:48:51,816
SAY ABOUT THIS AND DECIDED TO GO

3853
02:48:51,816 --> 02:48:55,586
WITH MORE COMMON THAN NOT 

3854
02:48:55,586 --> 02:49:01,992
BECAUSE THE RANGES ARE SO WIDE 

3855
02:49:01,992 --> 02:49:12,136
AND UNFORTUNATELY THE RESEARCH 

3856
02:49:12,136 --> 02:49:13,471
USES DIFFERENT MEASURES AND 

3857
02:49:13,471 --> 02:49:14,672
CHALLENGES OF CONDITIONS IN 

3858
02:49:14,672 --> 02:49:15,873
AUTISM AND LIKELY THE RATES 

3859
02:49:15,873 --> 02:49:20,878
WOULD VARY IF WE LOOKED CLOSELY 

3860
02:49:20,878 --> 02:49:23,581
WITHIN SUBGROUPS BASED ON I.Q. 

3861
02:49:23,581 --> 02:49:24,515
OR AGE RANGE.

3862
02:49:24,515 --> 02:49:27,218
I THINK INSTEAD I'M GOING 

3863
02:49:27,218 --> 02:49:30,121
HIGHLIGHT GENERAL CONCLUSIONS.

3864
02:49:30,121 --> 02:49:33,657
WE DO KNOW THAT DESPITE, ADHD, 

3865
02:49:33,657 --> 02:49:34,925
DEPRESSION AND OCD ARE 

3866
02:49:34,925 --> 02:49:45,402
INCREDIBLY COMMON IN AUTISM.

3867
02:49:46,537 --> 02:49:50,141
THERE'S SUGGESTION PSYCHOSIS AND

3868
02:49:50,141 --> 02:49:51,909
BIPOLAR DISORDER ARE MORE COMMON

3869
02:49:51,909 --> 02:49:53,177
IN AUTISTIC POPULATIONS.

3870
02:49:53,177 --> 02:49:56,614
THIS IS EXAMPLES WHERE WE HAVE 

3871
02:49:56,614 --> 02:49:57,715
SUCH LITTLE RESEARCH IT'S ALMOST

3872
02:49:57,715 --> 02:50:00,351
IMPOSSIBLE TO SAY AND SOME WOULD

3873
02:50:00,351 --> 02:50:02,186
BE SUBSTANCE ABUSE AND EATING 

3874
02:50:02,186 --> 02:50:10,528
DISORDERS.

3875
02:50:10,528 --> 02:50:18,569
I  -- IN THINKING ABOUT 

3876
02:50:18,569 --> 02:50:19,470
DISABILITY, LONELINESS AND 

3877
02:50:19,470 --> 02:50:20,371
DIFFICULTIES WITH COMPETITIVE 

3878
02:50:20,371 --> 02:50:22,039
EMPLOYMENT, LIVING INDEPENDENTLY

3879
02:50:22,039 --> 02:50:25,810
WE JUST HEARD ABOUT AND SUICIDAL

3880
02:50:25,810 --> 02:50:27,111
THOUGHTS AND THERE'S A PUBLIC 

3881
02:50:27,111 --> 02:50:27,945
COMMENT THAT TOUCHES ON MANY OF 

3882
02:50:27,945 --> 02:50:30,381
THOSE SAME THING.

3883
02:50:30,381 --> 02:50:33,217
AND BASICALLY MENTAL HEALTH IS 

3884
02:50:33,217 --> 02:50:35,586
AN OPPORTUNITY TO IMPACT ALL OF 

3885
02:50:35,586 --> 02:50:39,590
THESE THINGS BECAUSE MENTAL 

3886
02:50:39,590 --> 02:50:41,625
HEALTH PLAYS A ROLE IN SOME OF 

3887
02:50:41,625 --> 02:50:43,561
THESE OUTCOMES AND THEY IN TURN 

3888
02:50:43,561 --> 02:50:44,128
IMPACT MENTAL HEALTH.

3889
02:50:44,128 --> 02:50:45,830
SO WE HAVE AN OPPORTUNITY TO 

3890
02:50:45,830 --> 02:50:49,767
REALLY IMPROVE QUALITY OF LIFE, 

3891
02:50:49,767 --> 02:50:51,569
AND DECREASE MORTALITY BY 

3892
02:50:51,569 --> 02:50:55,573
FOCUSSING ON MENTAL HEALTH.

3893
02:50:55,573 --> 02:50:57,241
SO FOR A LITTLE BIT OF GOOD 

3894
02:50:57,241 --> 02:50:58,843
NEWS, I THOUGHT I WOULD 

3895
02:50:58,843 --> 02:51:00,477
HIGHLIGHT THE PROGRESS AND 

3896
02:51:00,477 --> 02:51:01,745
MOMENTUM WE'VE MADE IN THIS 

3897
02:51:01,745 --> 02:51:01,946
AREA.

3898
02:51:01,946 --> 02:51:05,049
I JUST DID A QUICK UPDATE SEARCH

3899
02:51:05,049 --> 02:51:09,119
LOOKING AT THE SEARCH TERMS OF 

3900
02:51:09,119 --> 02:51:11,555
AUTISM AND SOME ILLUSTRATED KEY 

3901
02:51:11,555 --> 02:51:13,991
TERMS RELATED TO MENTAL HEALTH 

3902
02:51:13,991 --> 02:51:15,993
AND SOME OF THE CONDITIONS AND 

3903
02:51:15,993 --> 02:51:17,428
SYMPTOMS WE'RE GOING TO TALK 

3904
02:51:17,428 --> 02:51:17,728
ABOUT TODAY.

3905
02:51:17,728 --> 02:51:23,634
AND BASICALLY YOU CAN SEE THE 

3906
02:51:23,634 --> 02:51:26,036
ATTENTION TO THE TOPIC IS 

3907
02:51:26,036 --> 02:51:36,247
ESCALATING.

3908
02:51:39,483 --> 02:51:41,485
THESE ARE ILLUSTRATIVE AND I 

3909
02:51:41,485 --> 02:51:43,087
WANTED TO MAKE A FEW POINTS.

3910
02:51:43,087 --> 02:51:45,689
HERE ON THE GRAPH WHAT YOU SEE 

3911
02:51:45,689 --> 02:51:48,926
IS THESE ARE TOTAL NUMBER OF 

3912
02:51:48,926 --> 02:51:49,260
PUBLICATIONS.

3913
02:51:49,260 --> 02:51:54,131
THOSE IN BLUE WERE PUBLISHED 

3914
02:51:54,131 --> 02:51:56,433
BEFORE 2018 SO 2017 AND EARLIER 

3915
02:51:56,433 --> 02:51:59,603
AND IN BLACK ARE PUBLICATIONS IN

3916
02:51:59,603 --> 02:52:00,671
THE LAST FIVE YEARS.

3917
02:52:00,671 --> 02:52:04,375
SO YOU CAN SEE CLEARLY IS THAT 

3918
02:52:04,375 --> 02:52:09,680
ESPECIALLY IN TERMS OF EMOTION, 

3919
02:52:09,680 --> 02:52:10,814
DYSREGULATION AND SUICIDE THE 

3920
02:52:10,814 --> 02:52:12,516
DATA HAS BEEN IN THE LAST FIVE 

3921
02:52:12,516 --> 02:52:15,152
YEARS AND POINT OUT TWO OTHER 

3922
02:52:15,152 --> 02:52:16,954
AREAS WITH VERY RARE PUBLICATION

3923
02:52:16,954 --> 02:52:17,855
RATES, IMMIGRATION AND 

3924
02:52:17,855 --> 02:52:20,024
SELF-INJURY, YOU DON'T SEE THE 

3925
02:52:20,024 --> 02:52:22,426
SAME SORT OF UPWARD TRAJECTORY.

3926
02:52:22,426 --> 02:52:24,795
IT'S PRETTY EVENLY SPLIT BETWEEN

3927
02:52:24,795 --> 02:52:31,568
THE PAST FIVE YEARS AND PRIOR.

3928
02:52:31,568 --> 02:52:32,736
IS CLEARLY WE'RE NOT THERE YET 

3929
02:52:32,736 --> 02:52:35,072
AND THERE'S MUCH TO DO.

3930
02:52:35,072 --> 02:52:35,940
WE'LL BE HEARING ABOUT THAT 

3931
02:52:35,940 --> 02:52:36,173
TODAY.

3932
02:52:36,173 --> 02:52:38,375
ONE BIG AREA WE NEED TO FOCUS 

3933
02:52:38,375 --> 02:52:41,612
ON, WE KNOW OUR RESEARCH IS NOT 

3934
02:52:41,612 --> 02:52:43,180
REPRESENTATIVE ENOUGH OF THE 

3935
02:52:43,180 --> 02:52:44,248
FULL SPECTRUM OF AUTISM 

3936
02:52:44,248 --> 02:52:46,583
INCLUDING ALL I.Q. AND SPEAKING 

3937
02:52:46,583 --> 02:52:48,319
ABILITIES AND ALL RACIAL ETHNIC 

3938
02:52:48,319 --> 02:52:50,020
AND GENDER IDENTITIES AND 

3939
02:52:50,020 --> 02:52:51,588
IMPORTANTLY THE FULL LIFE SPAN 

3940
02:52:51,588 --> 02:52:53,090
AS MENTAL HEALTH IS NOT 

3941
02:52:53,090 --> 02:52:54,959
SOMETHING JUST FOR CHILDREN, 

3942
02:52:54,959 --> 02:52:56,727
JUST FOR ADULTS.

3943
02:52:56,727 --> 02:52:59,029
THE FULL LIFE SPAN NEEDS TO BE 

3944
02:52:59,029 --> 02:52:59,330
CONSIDERED.

3945
02:52:59,330 --> 02:53:01,865
AND ALSO WE NEED TO DO A BETTER 

3946
02:53:01,865 --> 02:53:02,967
JOB CONSIDERING ALL THE 

3947
02:53:02,967 --> 02:53:03,968
DIFFERENT WAYS IN WHICH WE CAN 

3948
02:53:03,968 --> 02:53:07,571
UNDERSTAND MENTAL HEALTH.

3949
02:53:07,571 --> 02:53:09,173
FROM BIOLOGICAL RESEARCH DOWN TO

3950
02:53:09,173 --> 02:53:19,717
MORE COMMUNITY ENGAGED RESEARCH.

3951
02:53:41,638 --> 02:53:45,476
 I WANT TO END FROM A LETTER 

3952
02:53:45,476 --> 02:53:50,014
FROM A PARENT MY DAUGHTER HAS 

3953
02:53:50,014 --> 02:53:52,383
SELF-INJURIOUS BEHAVIOR AND 

3954
02:53:52,383 --> 02:53:54,251
SUICIDALITY NO ONE SEEMS TO KNOW

3955
02:53:54,251 --> 02:53:57,988
HOW TO TREAT AND SHE'S BEEN 

3956
02:53:57,988 --> 02:53:59,223
HOSPITALIZED MANY TIMES AND 

3957
02:53:59,223 --> 02:54:01,158
MEDICATE AND WITH LOOKED AT MANY

3958
02:54:01,158 --> 02:54:03,427
PROGRAMS WHICH ARE STANDARD 

3959
02:54:03,427 --> 02:54:06,296
TRADITIONAL THERAPY PROGRAMS 

3960
02:54:06,296 --> 02:54:07,564
THAT HAVE A WIDE EVIDENCE BASE 

3961
02:54:07,564 --> 02:54:09,933
AND UNIFORMLY TOLD US EITHER 

3962
02:54:09,933 --> 02:54:12,202
THEY DON'T ACCEPT PATIENTS WITH 

3963
02:54:12,202 --> 02:54:18,275
AN ASD DIAGNOSIS OR THE CBT OR 

3964
02:54:18,275 --> 02:54:20,010
DBT CANNOT BE USED WITH AUTISM 

3965
02:54:20,010 --> 02:54:21,578
PATIENTS AND I HEARD THIS 

3966
02:54:21,578 --> 02:54:23,180
SENTIMENT SO MANY TIMES AND IT'S

3967
02:54:23,180 --> 02:54:24,048
HEARTBREAKING AND A GOOD EXAMPLE

3968
02:54:24,048 --> 02:54:31,588
OF WHAT FAMILIES ARE FACING AND 

3969
02:54:31,588 --> 02:54:32,156
INDIVIDUALS SEEKING MENTAL 

3970
02:54:32,156 --> 02:54:33,023
HEALTH CARE.

3971
02:54:33,023 --> 02:54:35,826
WE NEED TO DO A BETTER JOB IN 

3972
02:54:35,826 --> 02:54:36,393
TRANSLATING TO PRACTICE AND 

3973
02:54:36,393 --> 02:54:40,397
DOING IT RAPIDLY.

3974
02:54:40,397 --> 02:54:42,599
SO WITH THAT -- I'M NOT GOOD AT 

3975
02:54:42,599 --> 02:54:47,571
ADVANCING THE SLIDES WITH THIS 

3976
02:54:47,571 --> 02:54:47,771
THING.

3977
02:54:47,771 --> 02:54:49,973
AND WITH THIS COMMENT IT'S NOT 

3978
02:54:49,973 --> 02:54:51,875
ALWAYS EASY BUT ANY MOUNTAIN CAN

3979
02:54:51,875 --> 02:54:54,211
BE CLIMBED SO WE HAVE OUR 

3980
02:54:54,211 --> 02:54:55,612
CHALLENGE AND NOW I'LL SHIFT TO 

3981
02:54:55,612 --> 02:54:58,515
THE NEXT PART OF RESEARCH TALKS 

3982
02:54:58,515 --> 02:55:01,385
STARTING WITH ME FOCUSSING ON 

3983
02:55:01,385 --> 02:55:07,591
TOPICS THAT HAVE RECEIVED LIMIT 

3984
02:55:07,591 --> 02:55:17,734
ATTENTION THUS FAR.

3985
02:55:17,734 --> 02:55:19,169
NOW I'LL TALK ABOUT OUR RESEARCH

3986
02:55:19,169 --> 02:55:20,571
IN THE REACT PROGRAM FOR 

3987
02:55:20,571 --> 02:55:22,539
REGULATION OF EMOTION IN 

3988
02:55:22,539 --> 02:55:24,241
AUTISTIC CHILDREN, TEENS AND 

3989
02:55:24,241 --> 02:55:24,475
ADULTS.

3990
02:55:24,475 --> 02:55:30,147
AND OUR OVER ALL MISSION IS TO 

3991
02:55:30,147 --> 02:55:30,714
IMPROVE MENTAL HEALTH AND 

3992
02:55:30,714 --> 02:55:32,015
WELL-BEING FOR AUTISTIC PEOPLE 

3993
02:55:32,015 --> 02:55:33,817
ACROSS THE LIFE SPAN.

3994
02:55:33,817 --> 02:55:37,187
I'LL PRESENT FOR OUR ENTIRE 

3995
02:55:37,187 --> 02:55:37,387
TEAM.

3996
02:55:37,387 --> 02:55:43,393
THESE ARE MY DISCLOSURES.

3997
02:55:43,393 --> 02:55:47,598
I'M GOING TO START BY ANCHORING 

3998
02:55:47,598 --> 02:55:50,801
US IN WHAT IS EMOTIONAL 

3999
02:55:50,801 --> 02:55:59,910
DYSREGULATION CONTROLLING THE 

4000
02:55:59,910 --> 02:56:03,580
LENGTH OF OR STRENGTH OF 

4001
02:56:03,580 --> 02:56:04,581
EPOTIOEPOT

4002
02:56:04,581 --> 02:56:05,582
EPOTIOEPOT

4003
02:56:05,582 --> 02:56:07,584
EPOTIOEPOT

4004
02:56:07,584 --> 02:56:11,588
EPOTION -- EMOTIONAL RESPONSE.

4005
02:56:11,588 --> 02:56:13,657
EMOTION DYSREGULATED WE FOUND IT

4006
02:56:13,657 --> 02:56:15,492
TO BE ASSOCIATED WITH A RANGE OF

4007
02:56:15,492 --> 02:56:16,593
PSYCHIATRIC CONDITIONS AND OTHER

4008
02:56:16,593 --> 02:56:18,095
ASPECTS OF MENTAL HEALTH.

4009
02:56:18,095 --> 02:56:21,598
SOME EXAMPLE DEPRESSION, 

4010
02:56:21,598 --> 02:56:24,735
ANXIETY, AGGRESSION AND 

4011
02:56:24,735 --> 02:56:26,637
SUICIDALITY ARE HIGHER AND YOU 

4012
02:56:26,637 --> 02:56:28,605
SEE MORE PSYCHIATRIC 

4013
02:56:28,605 --> 02:56:31,074
MEDICATIONS, HOSPITALIZATIONS, 

4014
02:56:31,074 --> 02:56:34,311
E.R. VISITS AND POLICE CONTACT 

4015
02:56:34,311 --> 02:56:40,317
WITH HIGHER DYSREGULATION.

4016
02:56:40,317 --> 02:56:43,587
IN OUR JOURNEY TO ADDRESS THIS 

4017
02:56:43,587 --> 02:56:46,323
WE STARTED LOOKING FOR A WAY TO 

4018
02:56:46,323 --> 02:56:51,562
MEASURE THIS THAT WORKS AND 

4019
02:56:51,562 --> 02:56:52,963
DEVELOPED THE EMOTION 

4020
02:56:52,963 --> 02:56:55,065
DYSREGULATION INVENTORY.

4021
02:56:55,065 --> 02:56:58,635
THE FIRST IS REACTIVITY WHICH IS

4022
02:56:58,635 --> 02:57:03,574
THE IDEA OF NEGATIVE EMOTIONAL 

4023
02:57:03,574 --> 02:57:06,810
REACTIONS TRA -- THAT COME ON 

4024
02:57:06,810 --> 02:57:09,079
RAPIDLY AND DYSPHORIA MORE OF A 

4025
02:57:09,079 --> 02:57:11,582
LACK OF POSITIVE EMOTION AND 

4026
02:57:11,582 --> 02:57:19,389
GENERAL UNEASE.

4027
02:57:19,389 --> 02:57:21,858
WE STARTED DEVELOPING SOMETHING 

4028
02:57:21,858 --> 02:57:23,594
THAT RESEARCHERS, EDUCATORS AND 

4029
02:57:23,594 --> 02:57:24,728
SOME PARENTS ARE USING 

4030
02:57:24,728 --> 02:57:27,598
THEMSELVES TO BE ABLE TO REALLY 

4031
02:57:27,598 --> 02:57:29,666
UNDERSTAND AND TRACK EMOTION 

4032
02:57:29,666 --> 02:57:32,603
DYSREGULATION IN A VARIETY OF 

4033
02:57:32,603 --> 02:57:33,437
CONTEST IN CLINICAL RESEARCH AND

4034
02:57:33,437 --> 02:57:34,671
CLINICAL CARE.

4035
02:57:34,671 --> 02:57:38,976
SO WE STARTED WITH THE EDI FOR 

4036
02:57:38,976 --> 02:57:40,477
AGES 6 AND ABOVE.

4037
02:57:40,477 --> 02:57:42,546
FIVE YEARS AGO AND I'M PROUD TO 

4038
02:57:42,546 --> 02:57:43,347
SAY WE MADE A LOT OF PROGRESS 

4039
02:57:43,347 --> 02:57:49,086
SINCE AND IT'S NOW BEING USED IN

4040
02:57:49,086 --> 02:57:59,496
45 COUNTRIES WORLDWIDE.

4041
02:58:00,264 --> 02:58:03,000
AND FOUR MONTHS AGO WE PUBLISHED

4042
02:58:03,000 --> 02:58:04,801
A YOUNGER VERSION FOR 2 TO 5 

4043
02:58:04,801 --> 02:58:07,137
YEARS AND FINISHED A SELF-REPORT

4044
02:58:07,137 --> 02:58:17,581
FOR 11 THROUGH ADULTHOOD.

4045
02:58:33,397 --> 02:58:36,500
IT'S VALIDATED IN MANY 

4046
02:58:36,500 --> 02:58:38,302
POPULATIONS AND WE HAVE 

4047
02:58:38,302 --> 02:58:40,103
PUBLISHED THIS EARLIER ABOUT THE

4048
02:58:40,103 --> 02:58:46,543
53% OF AGES 6 TO 17-YEAR-OLD 

4049
02:58:46,543 --> 02:58:49,146
LOSS OF REACTIVITY AND THIS IS 

4050
02:58:49,146 --> 02:58:51,381
PRESENT EARLY IN CHILDHOOD WITH 

4051
02:58:51,381 --> 02:58:53,216
RATES AT 58%.

4052
02:58:53,216 --> 02:58:55,185
AND IMPORTANTLY THESE NUMBERS 

4053
02:58:55,185 --> 02:58:56,353
ARE FOUR TIMES HIGHER THAN 

4054
02:58:56,353 --> 02:59:00,657
NON-AUTISTIC POPULATIONS.

4055
02:59:00,657 --> 02:59:03,260
WITH DYSPHORIA YOU ALSO SEE HIGH

4056
02:59:03,260 --> 02:59:05,395
RATES TWO TO THREE TIMES MORE 

4057
02:59:05,395 --> 02:59:07,230
THAN AUTISTIC POPULATION AND 

4058
02:59:07,230 --> 02:59:07,597
STARTING EARLY.

4059
02:59:07,597 --> 02:59:09,199
I DIDN'T HAVE TIME TO PUT IT IN 

4060
02:59:09,199 --> 02:59:11,968
THE SLIDES BUT I RAN THIS 

4061
02:59:11,968 --> 02:59:15,572
YESTERDAY AND OUR SELF-REPORT 

4062
02:59:15,572 --> 02:59:19,509
VERSION WE SEE 50% REACTIVITY.

4063
02:59:19,509 --> 02:59:20,911
THAT'S AGES 11 TO 83 TO I STILL 

4064
02:59:20,911 --> 02:59:23,180
HAVE TO BREAK THAT DOWN TEENS 

4065
02:59:23,180 --> 02:59:33,423
VERSUS ADULTS.

4066
02:59:38,962 --> 02:59:41,064
TO OTHER EXAMPLES IS LOOKING AT 

4067
02:59:41,064 --> 02:59:42,933
YOUNG CHILDREN AND REACTIVITY 

4068
02:59:42,933 --> 02:59:47,571
WAS THE STRONGEST PREDICTOR OF 

4069
02:59:47,571 --> 02:59:52,609
AGGRESSION MORE THAN AUTISM AND 

4070
02:59:52,609 --> 02:59:55,412
ADHD AND YOU FIND NO LONGER HAVE

4071
02:59:55,412 --> 02:59:56,079
SPEAKING ABILITY OR INTELLECTUAL

4072
02:59:56,079 --> 03:00:01,251
ABILITY.

4073
03:00:01,251 --> 03:00:05,822
ALSO LOOKING AT SELF-INJUR

4074
03:00:05,822 --> 03:00:11,128
SELF-INJURYIOUS -- INJURIOUS 

4075
03:00:11,128 --> 03:00:14,664
BEHAVIOR AND HALF THE TIME IT'S 

4076
03:00:14,664 --> 03:00:17,033
OBSERVABLE AS THE SELF-INJURY 

4077
03:00:17,033 --> 03:00:18,702
TIME AND BEFORE AND AFTER.

4078
03:00:18,702 --> 03:00:20,003
THIS IS AN IMPORTANT POINT 

4079
03:00:20,003 --> 03:00:22,506
BECAUSE IF YOU LOOK AT THE 

4080
03:00:22,506 --> 03:00:23,507
NON-MEDICATION TREATMENT OPTIONS

4081
03:00:23,507 --> 03:00:26,009
THEY TEND TO STILL BE 

4082
03:00:26,009 --> 03:00:27,110
BEHAVIORAL.

4083
03:00:27,110 --> 03:00:28,512
I THINK WE'RE MISSING A PIECE BY

4084
03:00:28,512 --> 03:00:31,581
NOT CONSIDERING THE ROLE OF 

4085
03:00:31,581 --> 03:00:33,483
EMOTION DYSREGULATION AND 

4086
03:00:33,483 --> 03:00:34,851
IMMIGRATION AND SELF-INJURY AND 

4087
03:00:34,851 --> 03:00:37,954
IT'S A CHANCE TO IMPROVE THE 

4088
03:00:37,954 --> 03:00:38,889
EFFECTIVENESS OF OUR 

4089
03:00:38,889 --> 03:00:39,222
INTERVENTIONS.

4090
03:00:39,222 --> 03:00:41,525
I WANT TO ACKNOWLEDGE IT'S NOT 

4091
03:00:41,525 --> 03:00:42,325
ALL EMOTION DYSREGULATION.

4092
03:00:42,325 --> 03:00:49,232
YOU CAN ALSO SEE THAT HERE AND 

4093
03:00:49,232 --> 03:00:50,500
WE HAVE A PAPER WE'RE GETTING 

4094
03:00:50,500 --> 03:00:51,034
READY TO SUBMIT.

4095
03:00:51,034 --> 03:00:53,937
WHEN WE LOOKED AT DIFFERENT 

4096
03:00:53,937 --> 03:00:57,841
PREDICTORS FOR TYPES OF 

4097
03:00:57,841 --> 03:01:00,143
SELF-INJURIOUS BEHAVIOR AND SOME

4098
03:01:00,143 --> 03:01:02,546
ARE RELATED TO EMOTIONAL 

4099
03:01:02,546 --> 03:01:04,948
DYSREGULATION AND SOME TO 

4100
03:01:04,948 --> 03:01:05,415
MEDICAL COMORBIDITIES.

4101
03:01:05,415 --> 03:01:07,584
CERTAINLY AN AREA WE NEED TO 

4102
03:01:07,584 --> 03:01:10,720
CONTINUE TO LOOK MORE INTO.

4103
03:01:10,720 --> 03:01:13,323
MOST THE RESEARCH I SUMMARIZED 

4104
03:01:13,323 --> 03:01:15,592
RAPIDLY IS ON CHILDREN AND WE 

4105
03:01:15,592 --> 03:01:17,961
ALSO ARE NOW FOCUSSING A LOT OF 

4106
03:01:17,961 --> 03:01:19,463
EFFORTS ON ADULTHOOD AND 

4107
03:01:19,463 --> 03:01:20,764
UNDERSTANDING MENTAL HEALTH 

4108
03:01:20,764 --> 03:01:27,337
OUTCOMES IN ADULTHOOD WITH OUR 

4109
03:01:27,337 --> 03:01:28,872
NEW NIMHD CENTER OF EXCELLENCE.

4110
03:01:28,872 --> 03:01:31,808
OUR CENTER HAS A STRONG FOCUS IN

4111
03:01:31,808 --> 03:01:32,075
SUICIDE.

4112
03:01:32,075 --> 03:01:33,877
I'M PUTTING A QUOTE HERE, I 

4113
03:01:33,877 --> 03:01:35,145
HATED HOW EVERYTHING WAS SO HARD

4114
03:01:35,145 --> 03:01:37,414
FOR ME THAT WAS EASY FOR 

4115
03:01:37,414 --> 03:01:39,082
EVERYONE ELSE AND THINGS ARE 

4116
03:01:39,082 --> 03:01:41,718
EASY FOR ME WERE NOT VALUED.

4117
03:01:41,718 --> 03:01:43,987
I WAS MISERABLE AND NO LONGER 

4118
03:01:43,987 --> 03:01:46,556
WANTED TO BE ON THIS EARTH.

4119
03:01:46,556 --> 03:01:49,059
THOSE SENTIMENTS WE ARE NOW 

4120
03:01:49,059 --> 03:01:51,161
SEEING LIKE HIGH RATES OF 

4121
03:01:51,161 --> 03:01:55,165
SUICIDE NOW THAT IT'S BEEN 

4122
03:01:55,165 --> 03:01:55,765
FINALLY GETTING SOME RESEARCH 

4123
03:01:55,765 --> 03:01:56,032
ATTENTION.

4124
03:01:56,032 --> 03:02:00,103
SO IN OUR CENTER WE'RE FOCUSSING

4125
03:02:00,103 --> 03:02:01,738
STRONGLY ON SUICIDE IN EVERY 

4126
03:02:01,738 --> 03:02:03,306
PROJECT BUT I JUST WANT TO 

4127
03:02:03,306 --> 03:02:04,241
ACKNOWLEDGE WE'RE HOPING TO 

4128
03:02:04,241 --> 03:02:05,242
REALLY UNDERSTAND THE FULL 

4129
03:02:05,242 --> 03:02:07,577
SPECTRUM OF MENTAL HEALTH IN 

4130
03:02:07,577 --> 03:02:12,482
ADULTHOOD SO WE'RE LOOKING AT 

4131
03:02:12,482 --> 03:02:14,885
THOSE WHO HAVE PERSISTENT OR 

4132
03:02:14,885 --> 03:02:20,590
CURRENT SUICIDAL THOUGHTS AND 

4133
03:02:20,590 --> 03:02:22,893
BEHAVIORS INCLUDING MANY PAST 

4134
03:02:22,893 --> 03:02:23,894
ATTEMPTS AND DIFFERENT FROM 

4135
03:02:23,894 --> 03:02:28,598
SOMEONE WHO HAS FLEETING SUICIDE

4136
03:02:28,598 --> 03:02:32,002
THOUGHTS AND HOW THAT REL  

4137
03:02:32,002 --> 03:02:34,170
RELATES TO OTHER MENTAL HEALTH 

4138
03:02:34,170 --> 03:02:35,805
OUTCOME AND MANAGE TO FLOURISH 

4139
03:02:35,805 --> 03:02:46,283
AND HIGHLIGHT SATISFACTION.

4140
03:03:03,567 --> 03:03:06,736
WE'RE USING INTERVIEWING, 

4141
03:03:06,736 --> 03:03:08,038
SELF-REPORT AND EVERYTHING UNDER

4142
03:03:08,038 --> 03:03:15,579
THE SUN, DISCRIMINATION, OTHER 

4143
03:03:15,579 --> 03:03:26,122
STRUCTURAL FACTORS OF LIFE AND 

4144
03:03:38,001 --> 03:03:39,369
WE NEED TO MAKE RAPID PROGRESS 

4145
03:03:39,369 --> 03:03:40,804
IN THE AREA AND NEED TO HAVE A 

4146
03:03:40,804 --> 03:03:45,241
WAY TO UNDERSTAND A RANGE OF 

4147
03:03:45,241 --> 03:03:45,942
SUICIDA

4148
03:03:45,942 --> 03:03:46,242
SUICIDALITY.

4149
03:03:46,242 --> 03:03:47,911
WE DEVELOPED THIS MEASURE CALLED

4150
03:03:47,911 --> 03:03:52,015
THE AUTISM SUICIDALITY INVENTORY

4151
03:03:52,015 --> 03:03:55,585
WORKING WITH RESEARCHERS AND 

4152
03:03:55,585 --> 03:03:59,589
THOSE WITH SUICIDE, PERSONAL 

4153
03:03:59,589 --> 03:04:02,025
SUICIDE EXPERIENCE.

4154
03:04:02,025 --> 03:04:05,862
WE DEVELOPED 300 ITEM COVER WHAT

4155
03:04:05,862 --> 03:04:08,064
YOU CAN THINK OF THAT MIGHT BE 

4156
03:04:08,064 --> 03:04:09,566
RELATED TO SUICIDALITY INCLUDING

4157
03:04:09,566 --> 03:04:19,576
WHAT'S CONNECTED IN THE 

4158
03:04:19,576 --> 03:04:30,086
NON-AUTISTIC AND HOPE TO SPUR 

4159
03:04:40,830 --> 03:04:51,141
RESEARCH IN THE TOPIC.

4160
03:05:00,083 --> 03:05:02,652
WE DID A DOD FUNDED TRIAL WITH 

4161
03:05:02,652 --> 03:05:05,321
12 TO 21-YEAR-OLDS WITH VERBAL 

4162
03:05:05,321 --> 03:05:07,957
I.Q. OVER 70 AND FIND TWO-THIRDS

4163
03:05:07,957 --> 03:05:10,226
WERE CATEGORIZED AS RESPONDERS 

4164
03:05:10,226 --> 03:05:12,796
BASED ON IMPROVEMENT AND EMOTION

4165
03:05:12,796 --> 03:05:13,997
DYSREGULATION COMPARED TO ONE 

4166
03:05:13,997 --> 03:05:15,999
THIRD IN COMPARISON THERAPY AND 

4167
03:05:15,999 --> 03:05:17,634
WE ALSO DEVELOPED A VERSION THAT

4168
03:05:17,634 --> 03:05:20,537
COULD BE USED IN THOSE WHO HAVE 

4169
03:05:20,537 --> 03:05:23,573
LOWER I.Q.s AND MAY NOT BE 

4170
03:05:23,573 --> 03:05:24,607
SPEAKING.

4171
03:05:24,607 --> 03:05:26,009
AND I WAS EXCITED PUTTING SLIDES

4172
03:05:26,009 --> 03:05:27,577
TOGETHER FOR THE FIRST TIME WITH

4173
03:05:27,577 --> 03:05:28,912
THESE BACK TO BACK SEEING THE 

4174
03:05:28,912 --> 03:05:31,581
RESPONSE RATE WAS ACTUALLY 

4175
03:05:31,581 --> 03:05:37,654
IDENTICAL.

4176
03:05:37,654 --> 03:05:38,288
WE'RE EXCITE ABOUT THE POTENTIAL

4177
03:05:38,288 --> 03:05:44,027
OF THESE.

4178
03:05:44,027 --> 03:05:46,896
I WANT TO END WITH WHERE WE'RE 

4179
03:05:46,896 --> 03:05:47,697
GOING AND A SNAPSHOT OF OUR 

4180
03:05:47,697 --> 03:05:51,167
CURRENT WORK.

4181
03:05:51,167 --> 03:05:55,572
LED BY JUSTIN NORTHROP LOOKING 

4182
03:05:55,572 --> 03:05:59,576
AT EARLY DEVELOPMENT OF 

4183
03:05:59,576 --> 03:06:00,977
DYSREGULATION AND PARENT 

4184
03:06:00,977 --> 03:06:01,277
REGULATION.

4185
03:06:01,277 --> 03:06:05,949
WE HAVE COMBINED THE TWO 

4186
03:06:05,949 --> 03:06:10,253
VERSIONS OF EASE INTO ONE USER 

4187
03:06:10,253 --> 03:06:13,723
FRIENDLY MANUAL AND 

4188
03:06:13,723 --> 03:06:14,657
UNDERSTANDING WHAT WORKS IN THE 

4189
03:06:14,657 --> 03:06:15,592
REAL WORLD WITH COMMUNITY 

4190
03:06:15,592 --> 03:06:19,562
CLINICIANS.

4191
03:06:19,562 --> 03:06:21,798
EXCITED DOWN THE ROAD TO PULL 

4192
03:06:21,798 --> 03:06:23,933
THE DATA TOGETHER AND I'M SURE 

4193
03:06:23,933 --> 03:06:25,869
YOU'RE GOING TO FIND SOME THINGS

4194
03:06:25,869 --> 03:06:27,570
WE THOUGHT WOULD BE RELATED TO 

4195
03:06:27,570 --> 03:06:30,140
MENTAL HEALTH BUT BECAUSE WE'RE 

4196
03:06:30,140 --> 03:06:31,574
HAVING SUCH BROAD STROKES I'M 

4197
03:06:31,574 --> 03:06:34,477
SURE WE'LL IDENTIFY NEW FACTORS 

4198
03:06:34,477 --> 03:06:36,780
TO CONSIDER IN IMPROVING ADULT 

4199
03:06:36,780 --> 03:06:47,190
MENTAL HEALTH OUTCOMES.

4200
03:07:01,671 --> 03:07:07,243
HOPEFULLY I DID THAT RAPIDLY AND

4201
03:07:07,243 --> 03:07:09,379
I WANT TO ACKNOWLEDGE THE 

4202
03:07:09,379 --> 03:07:11,581
FACULTY AND POSTDOCS WHO DID 

4203
03:07:11,581 --> 03:07:18,521
MOST THE WORK I PRESENTED AND 

4204
03:07:18,521 --> 03:07:23,560
OUR ACE LEAD INVESTIGATORS AND 

4205
03:07:23,560 --> 03:07:24,294
LEAD PARTNERS.

4206
03:07:24,294 --> 03:07:26,029
AND MANY OTHER KEY 

4207
03:07:26,029 --> 03:07:29,199
COLLABORATORS, STAFF AND THIS IS

4208
03:07:29,199 --> 03:07:31,067
NOT THE WHOLE LIST BUT THANK YOU

4209
03:07:31,067 --> 03:07:33,269
TO ALL WHO HAVE SUPPORTED THIS 

4210
03:07:33,269 --> 03:07:34,871
WORK.

4211
03:07:34,871 --> 03:07:38,007
I WILL TURN IT OVER TO MATT 

4212
03:07:38,007 --> 03:07:48,151
SIEGEL.

4213
03:08:33,162 --> 03:08:37,433
>> I DISAPPOINT WANT TO 

4214
03:08:37,433 --> 03:08:39,569
OVERSTATE HOW IMPORTANT 

4215
03:08:39,569 --> 03:08:43,206
DR. MAZEFSKY'S WORK HAS DONE IN 

4216
03:08:43,206 --> 03:08:43,740
DEVELOPING INTERVENTIONS.

4217
03:08:43,740 --> 03:08:46,042
AS YOU ALL KNOW IT TAKES A LONG 

4218
03:08:46,042 --> 03:08:48,478
TIME TO MOVE FROM EVIDENCE FOR 

4219
03:08:48,478 --> 03:08:49,746
AN INTERVENTION INTO THERAPISTS 

4220
03:08:49,746 --> 03:08:53,216
IN THE COMMUNITY ABLE TO DO IT 

4221
03:08:53,216 --> 03:08:54,784
AND I ENCOURAGE EVERYONE TO 

4222
03:08:54,784 --> 03:08:57,253
SUPPORT HER AND THAT TEAM IN 

4223
03:08:57,253 --> 03:09:00,189
TRYING TO MAKE THAT TRANSLATION 

4224
03:09:00,189 --> 03:09:01,991
AND NOT TAKE 20 YEARS WHICH IS 

4225
03:09:01,991 --> 03:09:03,026
WHAT IT USUALLY DOES.

4226
03:09:03,026 --> 03:09:07,563
WITH THAT SAID I'LL TALK ABOUT 

4227
03:09:07,563 --> 03:09:12,402
SELF-INJURY AND AGGRESSION.

4228
03:09:12,402 --> 03:09:14,037
I SEE WHAT YOU MEAN, NOT EASY TO

4229
03:09:14,037 --> 03:09:14,270
ADVANCE.

4230
03:09:14,270 --> 03:09:24,514
NOT JUST YOU.

4231
03:09:25,882 --> 03:09:27,583
IS AGGRESSION AND SELF-INJURY 

4232
03:09:27,583 --> 03:09:28,584
QUITE COMMON DEPENDING ON THE 

4233
03:09:28,584 --> 03:09:29,552
SAMPLE YOU'RE LOOKING AT AND 

4234
03:09:29,552 --> 03:09:31,587
GIVE A COUPLE EXAMPLES.

4235
03:09:31,587 --> 03:09:33,222
SO AGGRESSION AND WHEN WE SAY 

4236
03:09:33,222 --> 03:09:34,590
AGGRESSION IN THIS WORLD WE'RE 

4237
03:09:34,590 --> 03:09:35,925
NOT TALKING ABOUT VERBAL 

4238
03:09:35,925 --> 03:09:37,760
AGGRESSION.

4239
03:09:37,760 --> 03:09:38,728
VERBAL AGGRESSION DOES NOT BRING

4240
03:09:38,728 --> 03:09:40,129
YOU TO THE ATTENTION OF THE 

4241
03:09:40,129 --> 03:09:41,831
SERVICES I'M TALKING ABOUT.

4242
03:09:41,831 --> 03:09:43,566
I'M TALKING ABOUT PHYSICAL 

4243
03:09:43,566 --> 03:09:51,574
AGGRESSION.

4244
03:09:51,574 --> 03:09:55,578
THERE WAS A PARENT SURVEY SO 

4245
03:09:55,578 --> 03:09:57,647
CLINICALLY REFERRED KIDS AND 53%

4246
03:09:57,647 --> 03:10:00,650
OF PARENTS SAID YES, THEY'RE 

4247
03:10:00,650 --> 03:10:02,018
CURRENTLY DISPLAYING PHYSICAL 

4248
03:10:02,018 --> 03:10:02,452
AGGRESSION.

4249
03:10:02,452 --> 03:10:08,758
EVEN IN A CLINICALLY REFERRED 

4250
03:10:08,758 --> 03:10:11,194
SAMPLE'S A COMMONLY OCCURRING 

4251
03:10:11,194 --> 03:10:16,432
PROBLEM IN OUT-PATIENT TREATMENT

4252
03:10:16,432 --> 03:10:21,571
CLINIC IN THE NETWORK.

4253
03:10:21,571 --> 03:10:22,638
SELF-INJURY VERY DIFFERENT 

4254
03:10:22,638 --> 03:10:24,707
SOURCE THIS IS THE REVIEW OF 

4255
03:10:24,707 --> 03:10:27,577
8-YEAR-OLDS THAT COMES OUT EVERY

4256
03:10:27,577 --> 03:10:30,947
TWO YEARS AND HELPS GIVE BEST 

4257
03:10:30,947 --> 03:10:32,682
PREVALENCE DATA AND THAT RECORD 

4258
03:10:32,682 --> 03:10:35,485
REVIEW PRIMARILY, OVER A QUARTER

4259
03:10:35,485 --> 03:10:40,023
WERE IDENTIFIED AS HAVING 

4260
03:10:40,023 --> 03:10:41,858
SELF-INJURIOUS BEHAVIOR AND 

4261
03:10:41,858 --> 03:10:43,559
THAT'S REMARKABLE AS A COMMUNITY

4262
03:10:43,559 --> 03:10:53,703
SAMPLE.

4263
03:10:56,072 --> 03:10:58,741
THE IMPACT I'LL NOTE WE HEAR 

4264
03:10:58,741 --> 03:11:00,243
REPEATEDLY AND HAS BEEN SHOWN IN

4265
03:11:00,243 --> 03:11:04,781
THE LITERATURE THE IMPACT MANY 

4266
03:11:04,781 --> 03:11:07,583
FAMILIES WILL SAY OF AGGRESSION 

4267
03:11:07,583 --> 03:11:11,587
IS GREATER THAN THE CORE 

4268
03:11:11,587 --> 03:11:21,931
FEATURES OF AUTISM.

4269
03:11:36,946 --> 03:11:38,915
FAMILIES WILL SAY WE CAN HANDLE 

4270
03:11:38,915 --> 03:11:43,052
THE AUTISM BUT NOT THE 

4271
03:11:43,052 --> 03:11:45,354
AGGRESSION AND THAT'S REFLECTED 

4272
03:11:45,354 --> 03:11:45,788
IN THE LITERATURE.

4273
03:11:45,788 --> 03:11:48,157
THIS AREA, AGGRESSION, 

4274
03:11:48,157 --> 03:11:49,959
SELF-INJURY CAN BE SEEN ACROSS 

4275
03:11:49,959 --> 03:11:51,561
THE SPECTRUM AND IS A PARTICULAR

4276
03:11:51,561 --> 03:11:56,699
CONCERN FOR THOSE WITH PROFOUND 

4277
03:11:56,699 --> 03:11:59,602
AUTISM ALSO SOMETIMES CALLED 

4278
03:11:59,602 --> 03:12:07,643
SEVERE OR LEVEL 3 AUTISM OR FIX 

4279
03:12:07,643 --> 03:12:08,478
WITH CO-OCCURRING DISABILITY OR 

4280
03:12:08,478 --> 03:12:13,983
LIMITED ABILITY.

4281
03:12:13,983 --> 03:12:17,053
THERE WAS A REPORT THAT SHOWED 

4282
03:12:17,053 --> 03:12:18,521
26.27% BY THEIR DEFINITION MET 

4283
03:12:18,521 --> 03:12:24,127
THE CRITERIA OF PROFOUND AUTISM.

4284
03:12:24,127 --> 03:12:25,695
WHEN YOU LOOK AT THE REPORT IT'S

4285
03:12:25,695 --> 03:12:29,165
NOTABLE THOUGH THE DEFINITIONS 

4286
03:12:29,165 --> 03:12:31,567
FROM THE LANCET COMMISSION 

4287
03:12:31,567 --> 03:12:33,069
FOCUSSED ON ADAPTIVE 

4288
03:12:33,069 --> 03:12:33,369
FUNCTIONING.

4289
03:12:33,369 --> 03:12:38,007
THE ABILITY TO BE ON YOUR OWN IN

4290
03:12:38,007 --> 03:12:41,410
A HOME WITH OR WITHOUT ADULT 

4291
03:12:41,410 --> 03:12:41,644
SUPPORT.

4292
03:12:41,644 --> 03:12:44,714
THE REPORT FROM THE CDC DIDN'T 

4293
03:12:44,714 --> 03:12:47,583
USE THAT IT USED I.Q. AND 

4294
03:12:47,583 --> 03:12:49,719
COMMUNICATION RELATED CONCEPTS 

4295
03:12:49,719 --> 03:12:53,055
BUT THE POINT I -- THE REASON I 

4296
03:12:53,055 --> 03:12:55,591
BRING UP THE POINT IS I THINK 

4297
03:12:55,591 --> 03:12:58,728
THE 26.7% IS AN UNDER ESTIMATE.

4298
03:12:58,728 --> 03:12:59,595
BECAUSE IT WAS BASED ONLY ON 

4299
03:12:59,595 --> 03:13:02,865
I.Q. AND COMMUNICATION.

4300
03:13:02,865 --> 03:13:05,301
I THINK MANY OF US EXPERIENCE IN

4301
03:13:05,301 --> 03:13:07,570
AUTISM THAT REGARDLESS OF I.Q. 

4302
03:13:07,570 --> 03:13:10,339
OR COMMUNICATION ADAPTIVE 

4303
03:13:10,339 --> 03:13:11,574
FUNCTIONING CAN BE CHALLENGED OR

4304
03:13:11,574 --> 03:13:13,075
CHALLENGING.

4305
03:13:13,075 --> 03:13:16,245
ALSO IN THIS REPORT, IT WAS 

4306
03:13:16,245 --> 03:13:17,780
SHOWN THAT AGGRESSION IS MORE 

4307
03:13:17,780 --> 03:13:19,415
LIKELY IN THIS PROFOUND AUTISM 

4308
03:13:19,415 --> 03:13:21,651
GROUP WHICH IS SOMETHING WE KNEW

4309
03:13:21,651 --> 03:13:23,586
AND SIB WAS SIGNIFICANTLY MORE 

4310
03:13:23,586 --> 03:13:33,729
LIKELY.

4311
03:13:35,631 --> 03:13:37,300
A TAKEAWAY I GIVE IN VIRTUALLY 

4312
03:13:37,300 --> 03:13:39,869
EVERY TOPIC IS THE CONCEPT.

4313
03:13:39,869 --> 03:13:43,439
I'D LOVE PEOPLE TO TAKE THIS 

4314
03:13:43,439 --> 03:13:44,640
AWAY, AGGRESSION AND SELF-INJURY

4315
03:13:44,640 --> 03:13:46,876
ARE A FINAL SYMPTOM OR OUTCOME.

4316
03:13:46,876 --> 03:13:48,311
THEY'RE NOT A DISORDER.

4317
03:13:48,311 --> 03:13:50,012
THEY'RE NOT A DIAGNOSIS AND THE 

4318
03:13:50,012 --> 03:13:54,450
REASON I PUT IT THAT WAY AT 

4319
03:13:54,450 --> 03:13:56,752
LEAST YOU HAVE TO LOOK AT 

4320
03:13:56,752 --> 03:13:58,588
UNDERNEATH OR IN FRONT OF THAT 

4321
03:13:58,588 --> 03:13:59,689
OR HOWEVER YOU WANT TO PHRASE 

4322
03:13:59,689 --> 03:14:01,424
THAT FOR WHAT COULD BE 

4323
03:14:01,424 --> 03:14:03,593
CONTRIBUTING OR WHAT IS DRIVING 

4324
03:14:03,593 --> 03:14:05,361
THIS AGGRESSION AND SELF-INJURY.

4325
03:14:05,361 --> 03:14:08,030
AND SO NOT IN ANY PARTICULAR 

4326
03:14:08,030 --> 03:14:10,900
ORDER THERE ARE MANY FACTORS TO 

4327
03:14:10,900 --> 03:14:12,768
LOOK AT INCLUDING ARE THERE 

4328
03:14:12,768 --> 03:14:16,105
CO-OCCURRING PSYCHIATRIC 

4329
03:14:16,105 --> 03:14:16,372
DISORDERS?

4330
03:14:16,372 --> 03:14:17,940
IS THE SYMPTOM, WHICH SOME 

4331
03:14:17,940 --> 03:14:19,575
PEOPLE CALL BEHAVIOR, AGGRESSION

4332
03:14:19,575 --> 03:14:22,345
OR SELF-INJURY, WHAT'S THE 

4333
03:14:22,345 --> 03:14:23,579
FUNCTION OF IT AND HOW IS IT 

4334
03:14:23,579 --> 03:14:27,016
BEING REINFORCED IN THE 

4335
03:14:27,016 --> 03:14:29,585
ENVIRONMENT OR IS IT 

4336
03:14:29,585 --> 03:14:30,386
SELF-REINFORCING?

4337
03:14:30,386 --> 03:14:31,420
IS IT RELATED TO COMMUNICATION 

4338
03:14:31,420 --> 03:14:33,289
CHALLENGES OR SIDE EFFECTS OF 

4339
03:14:33,289 --> 03:14:35,157
MEDICATIONS OR OTHER THERAPIES?

4340
03:14:35,157 --> 03:14:39,562
HOW DOES IT RELATE TO SENSORY 

4341
03:14:39,562 --> 03:14:40,096
SYSTEM.

4342
03:14:40,096 --> 03:14:41,530
A QUESTION NOT OFTEN ASKED BUT I

4343
03:14:41,530 --> 03:14:43,566
THINK COULD BE HELPFUL IS HOW 

4344
03:14:43,566 --> 03:14:45,835
DOES IT RELATE TO A POTENTIAL 

4345
03:14:45,835 --> 03:14:47,603
MISMATCH BETWEEN THE PERSON'S 

4346
03:14:47,603 --> 03:14:49,138
ABILITIES AND DEMANDS BEING 

4347
03:14:49,138 --> 03:14:50,740
PLACED ON THEM.

4348
03:14:50,740 --> 03:14:53,709
DEMANDS TOO HIGH OR TOO LOW.

4349
03:14:53,709 --> 03:14:55,544
CHANGES IN THE FAMILY OF COURSE,

4350
03:14:55,544 --> 03:14:57,546
MEDICAL ILLNESS OR PAIN WHICH WE

4351
03:14:57,546 --> 03:15:00,116
WORRY ABOUT A GREAT DEAL 

4352
03:15:00,116 --> 03:15:01,617
PARTICULARLY WITH OUR 

4353
03:15:01,617 --> 03:15:03,586
INDIVIDUALS WHO CANNOT COMMUN 

4354
03:15:03,586 --> 03:15:08,024
KATE AS EASILY AND EMOTION 

4355
03:15:08,024 --> 03:15:11,060
REGULATION AS DR. MAZEFSKY SAID.

4356
03:15:11,060 --> 03:15:15,531
IF I CAN GET OUR CLINICAL 

4357
03:15:15,531 --> 03:15:17,667
TRAINEES TO THINK THIS WAY AND 

4358
03:15:17,667 --> 03:15:19,502
THINK BROADER ABOUT WHAT CAN BE 

4359
03:15:19,502 --> 03:15:20,169
VERY DRAMATIC PRESENTATION IN 

4360
03:15:20,169 --> 03:15:22,471
FRONT OF YOU, I FEEL LIKE WE'RE 

4361
03:15:22,471 --> 03:15:32,815
MAKING SOME HEADWAY.

4362
03:15:41,724 --> 03:15:43,893
WHAT DO WE DO ABOUT THIS?

4363
03:15:43,893 --> 03:15:46,429
MY TAKE IS WHAT OPTIONS ARE 

4364
03:15:46,429 --> 03:15:47,463
AVAILABLE IN THE U.S. IN SYSTEMS

4365
03:15:47,463 --> 03:15:48,397
OF CARE.

4366
03:15:48,397 --> 03:15:51,567
FROM MOST INTENSIVE OR ACUTE TO 

4367
03:15:51,567 --> 03:15:54,503
LEAST INTENSIVE IS THE PYRAMID.

4368
03:15:54,503 --> 03:15:58,174
AT THE TOP WE HAVE SPECIALIZED 

4369
03:15:58,174 --> 03:16:01,344
PSYCHIATRIC HOSPITAL UNITS, 

4370
03:16:01,344 --> 03:16:02,678
EXTREMELY FEW IN THE U.S. ABOUT 

4371
03:16:02,678 --> 03:16:02,845
18.

4372
03:16:02,845 --> 03:16:05,414
ALL A DOUBLING SINCE WE LAST 

4373
03:16:05,414 --> 03:16:08,017
LOOKED IN 2011 WHEN THERE WERE 

4374
03:16:08,017 --> 03:16:10,086
ABOUT NINE.

4375
03:16:10,086 --> 03:16:11,721
I REFERENCED ABOUT 1600 GENERAL 

4376
03:16:11,721 --> 03:16:14,023
IN-PATIENT PSYCHIATRY PATIENTS 

4377
03:16:14,023 --> 03:16:15,324
IN THE U.S.

4378
03:16:15,324 --> 03:16:15,925
IT'S A SMALL NUMBER BUT THERE 

4379
03:16:15,925 --> 03:16:26,102
ARE SOME.

4380
03:16:39,081 --> 03:16:49,525
IT'S A BASED ON OTHER FACTORS.

4381
03:16:58,634 --> 03:17:01,003
I'LL FOCUS ON THE IN-PATIENT 

4382
03:17:01,003 --> 03:17:02,071
REALM I'LL FOCUS ON THAT A 

4383
03:17:02,071 --> 03:17:02,705
LITTLE BIT.

4384
03:17:02,705 --> 03:17:04,707
THE FIRST POINT ABOUT THE TOP OF

4385
03:17:04,707 --> 03:17:06,842
THE PYRAMID THE MOST INTENSIVE 

4386
03:17:06,842 --> 03:17:09,912
SETTING IS THOUGH THERE'S SO FEW

4387
03:17:09,912 --> 03:17:12,715
UNITS, KIDS WITH AUTISM HAVE 

4388
03:17:12,715 --> 03:17:14,183
HIGH RATES OF PSYCHIATRIC 

4389
03:17:14,183 --> 03:17:15,584
HOSPITALIZATION.

4390
03:17:15,584 --> 03:17:17,820
ONE STUDY BY DAVID MANDELL 

4391
03:17:17,820 --> 03:17:20,823
SHOWED 11% OF KIDS BY THE AGE 

4392
03:17:20,823 --> 03:17:25,394
THEY HIT 21 HAD BEEN 

4393
03:17:25,394 --> 03:17:26,162
PSYCHIATRICALLY HOSPITALIZED AND

4394
03:17:26,162 --> 03:17:31,167
THAT'S HUGE BECAUSE THE 

4395
03:17:31,167 --> 03:17:33,502
COROLLARY NUMBER WITH KIDS WITH 

4396
03:17:33,502 --> 03:17:39,675
PRIVATE INSURANCE IS .11%.

4397
03:17:39,675 --> 03:17:41,177
THIS IS MUCH HIGHER AND ENERGY 

4398
03:17:41,177 --> 03:17:47,349
WAY TO GET AT THAT IS LISA CROEN

4399
03:17:47,349 --> 03:17:50,553
FOUND A 6-1 RATIO OF HOSPITAL 

4400
03:17:50,553 --> 03:17:53,289
FOR KIDS WITH AUTISM VERSUS NOT 

4401
03:17:53,289 --> 03:17:59,595
AUTISM IN A FAIRLY LARGE SAMPLE 

4402
03:17:59,595 --> 03:18:03,999
PSYCHIATRIC HOSPITALIZATION.

4403
03:18:03,999 --> 03:18:06,435
A POINT TO MAKE IS THIS GROUP OF

4404
03:18:06,435 --> 03:18:07,670
PEOPLE ARE BEING HOSPITALIZED 

4405
03:18:07,670 --> 03:18:10,339
NOT NECESSARILY FOR THE SAME 

4406
03:18:10,339 --> 03:18:11,974
REASONS THAT KIDS WHO DON'T HAVE

4407
03:18:11,974 --> 03:18:13,776
AUTISM ARE BEING HOSPITALIZED 

4408
03:18:13,776 --> 03:18:17,046
WHO ARE OFTEN PRESENTING WITH 

4409
03:18:17,046 --> 03:18:18,747
SUICIDALITY, SEVERE DEPRESSION 

4410
03:18:18,747 --> 03:18:22,084
AND ANXIETY, ETCETERA.

4411
03:18:22,084 --> 03:18:25,821
THIS GROUP GENERALLY PRESENTS 

4412
03:18:25,821 --> 03:18:27,389
WITH AGGRESSION, SELF-INJURY, 

4413
03:18:27,389 --> 03:18:29,792
PROPERTY DESTRUCTION, ETCETERA.

4414
03:18:29,792 --> 03:18:31,961
THEY MAY ALSO PRESENT WITH 

4415
03:18:31,961 --> 03:18:33,696
DEPRESSION OR SUICIDALITY, 

4416
03:18:33,696 --> 03:18:35,764
ETCETERA AND THE STUDY WAS THE 

4417
03:18:35,764 --> 03:18:38,033
CHIEF COMPLAINT TO THE DEGREE IT

4418
03:18:38,033 --> 03:18:38,634
COULD BE DETERMINED.

4419
03:18:38,634 --> 03:18:43,539
AND THAT'S WORTH NOTING BECAUSE 

4420
03:18:43,539 --> 03:18:45,474
TYPICALLY PATIENTS IN 

4421
03:18:45,474 --> 03:18:48,244
PSYCHIATRIC SETTINGS ARE NOT 

4422
03:18:48,244 --> 03:18:53,916
DESIGNED FOR EXTERNALIZING 

4423
03:18:53,916 --> 03:18:56,852
BEHAVIORS BUT INTERNALIZING 

4424
03:18:56,852 --> 03:18:59,188
BEHAVIORS LIKE SUICIDALITY SO 

4425
03:18:59,188 --> 03:19:01,657
YOU CAN'T USE A TYPICAL SET UP.

4426
03:19:01,657 --> 03:19:04,260
A QUICK LOOK WE TRIED TO SEE CAN

4427
03:19:04,260 --> 03:19:06,328
WE PRODUCE SOME EVIDENCE FOR 

4428
03:19:06,328 --> 03:19:09,198
THESE SPECIALIZED IN-PATIENT 

4429
03:19:09,198 --> 03:19:09,398
UNITS.

4430
03:19:09,398 --> 03:19:14,470
THIS WAS A STUDY OF KIDS WITH 

4431
03:19:14,470 --> 03:19:16,105
AUTISM AND WE LOOKED AT 350 OF 

4432
03:19:16,105 --> 03:19:19,208
THEM AND THIS IS A BUSY FIGURE 

4433
03:19:19,208 --> 03:19:21,443
BUT IT ESSENTIALLY SHOWS THEY 

4434
03:19:21,443 --> 03:19:24,914
COME IN VERY HIGH IN TERMS OF 

4435
03:19:24,914 --> 03:19:26,382
GRESSION, SELF-INJURY AND 

4436
03:19:26,382 --> 03:19:29,685
TANTRUMS AND LEAVE WITH A DROP 

4437
03:19:29,685 --> 03:19:32,187
AND THERE'S SOME REGRESSION AT 

4438
03:19:32,187 --> 03:19:34,723
TWO-MONTH FOLLOW-UP BUT NOT 

4439
03:19:34,723 --> 03:19:36,592
SIGNIFICANT AMOUNT AND GETTING 

4440
03:19:36,592 --> 03:19:39,562
ENDURING AFFECT AS OF THE YA 

4441
03:19:39,562 --> 03:19:41,830
TRICK HOSPITALIZATION IN THE 

4442
03:19:41,830 --> 03:19:43,566
SPECIALTY UNITS NOT IN YOUR 

4443
03:19:43,566 --> 03:19:45,367
NORMAL CHILD AND ADOLESCENT UNIT

4444
03:19:45,367 --> 03:19:46,802
I MIGHT ACCESS.

4445
03:19:46,802 --> 03:19:52,474
THOSE OUTCOMES ARE UNKNOWN.

4446
03:19:52,474 --> 03:19:54,376
SO, THOSE UNITS CAN BE HELPFUL 

4447
03:19:54,376 --> 03:19:57,880
AND I'VE FOCUSSED ON THEM BUT WE

4448
03:19:57,880 --> 03:20:01,417
ALSO DID SOME WORK RECOGNIZING 

4449
03:20:01,417 --> 03:20:02,651
THAT THERE'LL NEVER BE ENOUGH OF

4450
03:20:02,651 --> 03:20:03,519
THOSE UNITS.

4451
03:20:03,519 --> 03:20:05,254
NOT EVEN CLOSE TO ENOUGH.

4452
03:20:05,254 --> 03:20:06,689
THERE'S 18 NOW AND THERE WERE 

4453
03:20:06,689 --> 03:20:08,424
NINE A DECADE AGO.

4454
03:20:08,424 --> 03:20:10,793
IT'S NOT ONE PER STATE, 

4455
03:20:10,793 --> 03:20:11,260
OBVIOUSLY.

4456
03:20:11,260 --> 03:20:15,564
HOW ELSE CAN WE IMPROVE CARE IN 

4457
03:20:15,564 --> 03:20:18,200
PSYCHIATRIC HOSPITAL FOR THE 

4458
03:20:18,200 --> 03:20:18,500
POPULATIONS?

4459
03:20:18,500 --> 03:20:20,235
WE DID A PROJECT WITH BELLEVUE 

4460
03:20:20,235 --> 03:20:23,672
HOSPITAL IN MANHATTAN A PUBLIC 

4461
03:20:23,672 --> 03:20:25,174
LOW-RESOURCE PSYCHIATRIC 

4462
03:20:25,174 --> 03:20:27,543
HOSPITAL AND DEVELOPED A CARE 

4463
03:20:27,543 --> 03:20:30,813
PATHWAY FOR YOUTH WITH AUTISM OR

4464
03:20:30,813 --> 03:20:31,480
INTELLECTUAL DISABILITY.

4465
03:20:31,480 --> 03:20:33,716
DOES SOME BASIC WHAT I WOULD 

4466
03:20:33,716 --> 03:20:37,286
CALL A PRE-LOW INTERVENTION WITH

4467
03:20:37,286 --> 03:20:40,255
THE CARE PATHWAY AND GOT 

4468
03:20:40,255 --> 03:20:41,123
DRAMATIC RESULTS WHERE THE 

4469
03:20:41,123 --> 03:20:43,592
LENGTH OF STAY IN THE HOSPITAL 

4470
03:20:43,592 --> 03:20:46,528
DECREASED SIGNIFICANTLY.

4471
03:20:46,528 --> 03:20:50,032
AND PERHAPS STRIKING THE USE OF 

4472
03:20:50,032 --> 03:20:52,334
PHYSICAL HOLDS AND RESTRAINTS 

4473
03:20:52,334 --> 03:20:56,005
WENT DOWN 80% PRE-INTERVENTION 

4474
03:20:56,005 --> 03:20:57,039
VERSUS POST.

4475
03:20:57,039 --> 03:20:59,241
I THINK THAT SAYS THERE'S WAYS 

4476
03:20:59,241 --> 03:21:02,011
TO IMPROVE AN NON-SPECIALIZED 

4477
03:21:02,011 --> 03:21:02,511
SETTINGS POTENTIALLY.

4478
03:21:02,511 --> 03:21:05,681
SO AS MUCH AS I TOLD YOU ABOUT 

4479
03:21:05,681 --> 03:21:06,615
TREATMENT THERE ARE BIG GAPS 

4480
03:21:06,615 --> 03:21:08,917
WHICH EVERYONE HAS SPOKEN TO IN 

4481
03:21:08,917 --> 03:21:10,519
VARIOUS WAYS TODAY SO JUST A 

4482
03:21:10,519 --> 03:21:13,155
SUMMARY OF SOME OF THE COMMON 

4483
03:21:13,155 --> 03:21:13,422
GAPS.

4484
03:21:13,422 --> 03:21:15,858
THERE'S UNEVEN GEOGRAPHIC 

4485
03:21:15,858 --> 03:21:16,191
DISTRIBUTION.

4486
03:21:16,191 --> 03:21:19,561
THERE'S -- WE HAVE A SPECIALTY 

4487
03:21:19,561 --> 03:21:23,565
UNIT IN PORTLAND, MAINE WITH A 

4488
03:21:23,565 --> 03:21:26,869
POPULATION OF 250,000 AND NEW 

4489
03:21:26,869 --> 03:21:28,937
YORK CITY DIDN'T HAVE A UNIT FOR

4490
03:21:28,937 --> 03:21:31,440
YOUTH WITH AUTISM OR DEVELOPMENT

4491
03:21:31,440 --> 03:21:31,974
DISABILITY, ZERO.

4492
03:21:31,974 --> 03:21:34,443
THEY HAVE PROVIDERS DOING THEIR 

4493
03:21:34,443 --> 03:21:35,611
BEST BUT DON'T HAVE A SPECIALTY 

4494
03:21:35,611 --> 03:21:38,580
UNIT AS AN EXAMPLE.

4495
03:21:38,580 --> 03:21:40,582
INTERMEDIATE LEVELS OF CARE FROM

4496
03:21:40,582 --> 03:21:43,986
MY VIEW ARE RARE LIKE INTENSIVE 

4497
03:21:43,986 --> 03:21:45,387
OUT-PATIENT AND SPECIALIZED 

4498
03:21:45,387 --> 03:21:47,656
CLI

4499
03:21:47,656 --> 03:21:51,960
CLINICS THAT CAN WORK ON THESE 

4500
03:21:51,960 --> 03:21:52,661
CHALLENGES ARE QUITE RARE AND 

4501
03:21:52,661 --> 03:21:54,830
MOST ARE SEEN IN PRIMARY CARE 

4502
03:21:54,830 --> 03:21:55,964
NOR NOT AT ALL.

4503
03:21:55,964 --> 03:21:57,599
SOMETHING ELSE TO NOTE THERE'S 

4504
03:21:57,599 --> 03:21:59,068
MANY RESIDENTIAL TREATMENT 

4505
03:21:59,068 --> 03:22:00,969
CENTERS IN THE U.S. PEOPLE CALL 

4506
03:22:00,969 --> 03:22:02,037
THEM DIFFERENT THINGS, GROUP 

4507
03:22:02,037 --> 03:22:04,406
HOMES, PRTF, ETCETERA.

4508
03:22:04,406 --> 03:22:05,140
THERE'S PLACES WHERE PEOPLE LIVE

4509
03:22:05,140 --> 03:22:08,544
AND ARE SUPPOSED TO GET 

4510
03:22:08,544 --> 03:22:12,047
TREATMENT AND VERY FEW WHO HAVE 

4511
03:22:12,047 --> 03:22:13,282
SIGNIFICANT EXPERTISE FOR THIS 

4512
03:22:13,282 --> 03:22:14,416
POPULATION AND THERE'S ALMOST NO

4513
03:22:14,416 --> 03:22:16,685
DATA ABOUT THEM.

4514
03:22:16,685 --> 03:22:18,854
AND WE ARE SPENDING VAST SUMS OF

4515
03:22:18,854 --> 03:22:20,522
MONEY ON RESIDENTIAL TREATMENTS.

4516
03:22:20,522 --> 03:22:24,593
I DON'T HAVE A PROBLEM WITH THAT

4517
03:22:24,593 --> 03:22:27,563
BUT A PROBLEM WITH NO IDEA ON 

4518
03:22:27,563 --> 03:22:28,597
KNOWING THE OUTCOMES AND THAT'S 

4519
03:22:28,597 --> 03:22:30,032
AN AREA THAT CAN USE MORE 

4520
03:22:30,032 --> 03:22:30,699
ATTENTION.

4521
03:22:30,699 --> 03:22:34,436
FINALLY, MANY PLACES MIGHT HAVE 

4522
03:22:34,436 --> 03:22:36,505
ONE PIECE OF THIS CONTINUUM OR 

4523
03:22:36,505 --> 03:22:37,973
LEVELS OF CARE BUT VERY FEW HAVE

4524
03:22:37,973 --> 03:22:39,875
A CONTINUUM WITH MULTIPLE LEVELS

4525
03:22:39,875 --> 03:22:42,010
OF CARE WHICH IS WHAT YOU NEED 

4526
03:22:42,010 --> 03:22:43,579
TO REALLY CARE FOR THE 

4527
03:22:43,579 --> 03:22:47,716
POPULATION.

4528
03:22:47,716 --> 03:22:51,487
WE HAVE A LONG WAY TO GO.

4529
03:22:51,487 --> 03:22:55,591
BRIEFLY, AND THEN I'LL WRAP UP, 

4530
03:22:55,591 --> 03:22:57,259
RESEARCH GAPS IN AGGRESSION AND 

4531
03:22:57,259 --> 03:22:58,994
SELF-INJURY THERE'S MANY.

4532
03:22:58,994 --> 03:23:01,130
THIS IS MY TAKE ON THE PROMINENT

4533
03:23:01,130 --> 03:23:01,730
ONES.

4534
03:23:01,730 --> 03:23:03,465
REALLY WE STILL DON'T HAVE A 

4535
03:23:03,465 --> 03:23:05,801
GOOD NATURAL HISTORIES STUDIES 

4536
03:23:05,801 --> 03:23:07,202
ON IN OTHER WORDS I CAN'T SAY TO

4537
03:23:07,202 --> 03:23:09,138
A PARENT OF A 12-YEAR-OLD THIS 

4538
03:23:09,138 --> 03:23:11,874
IS LIKELY TO GET BETTER AS THE 

4539
03:23:11,874 --> 03:23:12,975
CHILD AGES OR WON'T OR GET 

4540
03:23:12,975 --> 03:23:13,175
WORSE.

4541
03:23:13,175 --> 03:23:15,577
I DON'T HAVE A STUDY TO HELP 

4542
03:23:15,577 --> 03:23:19,047
GIVE THAT KIND OF GUIDANCE FOR A

4543
03:23:19,047 --> 03:23:20,482
PARENT.

4544
03:23:20,482 --> 03:23:23,719
CERTAINLY THE ETIOLOGY NEEDS A 

4545
03:23:23,719 --> 03:23:24,520
LOT OF WORK.

4546
03:23:24,520 --> 03:23:27,322
SO BECAUSE WE HAVE THE 

4547
03:23:27,322 --> 03:23:29,992
BEHAVIORAL FUNCTIONAL APPROACH 

4548
03:23:29,992 --> 03:23:31,927
AND A LOT OF WORK THERE BUT WE 

4549
03:23:31,927 --> 03:23:34,696
REALLY NEED MORE NOVEL 

4550
03:23:34,696 --> 03:23:35,697
APPROACHES TO AGGRESSION 

4551
03:23:35,697 --> 03:23:39,001
SELF-INJURY AND LOOKING AT 

4552
03:23:39,001 --> 03:23:40,469
BIOLOGICAL MECHANISM AND USING 

4553
03:23:40,469 --> 03:23:41,870
OBJECTIVE MEASURES, PERHAPS 

4554
03:23:41,870 --> 03:23:42,171
PHYSIOLOGY.

4555
03:23:42,171 --> 03:23:46,909
THERE'S BEEN EARLY WORK IN THAT 

4556
03:23:46,909 --> 03:23:48,410
BUT IT IS EARLY AND I THINK IT'S

4557
03:23:48,410 --> 03:23:50,412
AN AREA THAT GOT ATTENTION 20, 

4558
03:23:50,412 --> 03:23:55,751
30 YEARS AGO AND NOT MUCH HAS 

4559
03:23:55,751 --> 03:23:58,620
HAPPENED AS THE PUBLICATION 

4560
03:23:58,620 --> 03:24:00,556
CHART SHOWED AND THINK IT'S 

4561
03:24:00,556 --> 03:24:01,290
RIGHT BUT WILL REQUIRE ATTENTION

4562
03:24:01,290 --> 03:24:02,691
AND FUNDING.

4563
03:24:02,691 --> 03:24:06,795
THERE'S A NEED FOR GOOD TOOLS TO

4564
03:24:06,795 --> 03:24:09,264
DIAGNOSE PSYCHIATRIC 

4565
03:24:09,264 --> 03:24:09,898
CO-OCCURRING DISORDERS ACROSS 

4566
03:24:09,898 --> 03:24:10,999
THE SPECTRUM.

4567
03:24:10,999 --> 03:24:13,235
THERE'S MORE WORK TO DO WITHIN 

4568
03:24:13,235 --> 03:24:17,472
APPLIED BEHAVIOR ANALYSIS AND 

4569
03:24:17,472 --> 03:24:19,875
FUNCTIONS OF BEHAVIOR AND 

4570
03:24:19,875 --> 03:24:23,579
EMOTION REGULATION TO THINGS 

4571
03:24:23,579 --> 03:24:27,082
THAT WE OBSERVE AND SEE.

4572
03:24:27,082 --> 03:24:30,619
ACCESS IS A HUGE ISSUE AND WHAT 

4573
03:24:30,619 --> 03:24:35,057
ARE THE BARRIERS TO ACCESS.

4574
03:24:35,057 --> 03:24:37,192
IS IT CAPACITY OR OTHER THINGS 

4575
03:24:37,192 --> 03:24:38,327
AND WHICH ARE MODIFIABLE.

4576
03:24:38,327 --> 03:24:45,968
WHAT CAN WE DO ABOUT THIS?

4577
03:24:45,968 --> 03:24:51,039
FURTHER RESEARCH GAPS IN 

4578
03:24:51,039 --> 03:25:00,282
TREATMENT.

4579
03:25:00,282 --> 03:25:03,285
WITH HAVE SINGLE-CASE STUDIES 

4580
03:25:03,285 --> 03:25:06,288
THATRY SCIENTIFICALLY VALID BUT 

4581
03:25:06,288 --> 03:25:09,157
FRANKLY INSURERS, POLICY MAKERS,

4582
03:25:09,157 --> 03:25:10,392
PEOPLE WHO RUN HOSPITALS DON'T 

4583
03:25:10,392 --> 03:25:11,393
UNDERSTAND THEM AND DON'T KNOW 

4584
03:25:11,393 --> 03:25:13,262
WHAT TO MAKE OF THEM.

4585
03:25:13,262 --> 03:25:16,565
THEY NEED TO SEE GROUP 

4586
03:25:16,565 --> 03:25:17,900
RANDOMIZED TRIALS OR GROUP 

4587
03:25:17,900 --> 03:25:18,367
EFFECTIVENESS TRIALS.

4588
03:25:18,367 --> 03:25:19,568
THAT'S JUST THE WORLD WE LIVE 

4589
03:25:19,568 --> 03:25:20,035
IN.

4590
03:25:20,035 --> 03:25:22,971
WE NEED CONTROL GROUP STUDIES OF

4591
03:25:22,971 --> 03:25:24,373
TREATMENT PACKAGES.

4592
03:25:24,373 --> 03:25:25,908
PERHAPS ADA PLUS FUNCTIONAL 

4593
03:25:25,908 --> 03:25:28,043
COMMUNICATION TRAINING OR ADA 

4594
03:25:28,043 --> 03:25:30,445
PLUS MEDS BUT PARENT TRAINING.

4595
03:25:30,445 --> 03:25:31,947
THAT'S WHAT HAPPENS IN THE REAL 

4596
03:25:31,947 --> 03:25:33,382
WORLD IF YOU'RE LUCKY ENOUGH TO 

4597
03:25:33,382 --> 03:25:34,449
ACCESS IT BUT WE DON'T HAVE 

4598
03:25:34,449 --> 03:25:34,650
MUCH.

4599
03:25:34,650 --> 03:25:38,020
WE HAVE A FEW STUDIES THAT HAVE 

4600
03:25:38,020 --> 03:25:41,290
BEEN FUNDED BY NIMHD ON MEDS BUT

4601
03:25:41,290 --> 03:25:43,592
PARENT TRAINING BUT NOT MUCH 

4602
03:25:43,592 --> 03:25:50,999
BEYOND THAT.

4603
03:25:50,999 --> 03:25:52,100
AND PEOPLE WITH PROFOUND AUTISM 

4604
03:25:52,100 --> 03:25:55,570
IN OUR STUDIES PARTICULARLY OF 

4605
03:25:55,570 --> 03:25:57,773
TREATMENT.

4606
03:25:57,773 --> 03:25:59,574
THAT'S MY FINAL POINT.

4607
03:25:59,574 --> 03:26:02,177
WE HAVE UNFORTUNATELY PUBLISHED 

4608
03:26:02,177 --> 03:26:04,746
THIS PAPER YEARS AGO WE HAVE 

4609
03:26:04,746 --> 03:26:05,814
UNFORTUNATELY SEEN A DECREASING 

4610
03:26:05,814 --> 03:26:07,716
INCLUSION OR PARTICIPATION OF 

4611
03:26:07,716 --> 03:26:11,520
PEOPLE WITH I'LL USE THE TERM 

4612
03:26:11,520 --> 03:26:13,789
AUTISM IN SPECIFICALLY TREATMENT

4613
03:26:13,789 --> 03:26:14,022
STUDIES.

4614
03:26:14,022 --> 03:26:16,758
I THINK IT MAY BE IN ALL STUDIES

4615
03:26:16,758 --> 03:26:17,826
BUT CERTAINLY IN TREATMENT 

4616
03:26:17,826 --> 03:26:19,094
STUDIES AS AN EXAMPLE OF SHOWING

4617
03:26:19,094 --> 03:26:21,997
THAT THAT'S A FIGURE FROM THAT 

4618
03:26:21,997 --> 03:26:26,034
PAPER WHERE YOU SEE THE AVERAGE 

4619
03:26:26,034 --> 03:26:27,569
I.Q. AND COMMUNICATION ABILITY 

4620
03:26:27,569 --> 03:26:29,071
AND EVEN ADAPTIVE FUNCTIONING 

4621
03:26:29,071 --> 03:26:32,374
RISING OVER TIME WHEN WE LOOKED 

4622
03:26:32,374 --> 03:26:35,978
AT 367 TREATMENT STUDIES AT VERY

4623
03:26:35,978 --> 03:26:38,046
SIGNIFICANT RISE IN THESE 

4624
03:26:38,046 --> 03:26:39,581
THINGS.

4625
03:26:39,581 --> 03:26:40,515
THE PERCENTAGE OF STUDIES THAT 

4626
03:26:40,515 --> 03:26:43,952
INCLUDE OR FOCUS ON PEOPLE WITH 

4627
03:26:43,952 --> 03:26:47,589
PROFOUND AUTISM HAS BECOME 

4628
03:26:47,589 --> 03:26:52,461
SMALLER AND SMALLER OVER TIME.

4629
03:26:52,461 --> 03:26:53,962
I WANT TO ENCOURAGE 

4630
03:26:53,962 --> 03:26:56,031
COLLABORATORS AND THE GROUP IS 

4631
03:26:56,031 --> 03:26:56,965
LARGER AS WELL AS OUR RESEARCH 

4632
03:26:56,965 --> 03:26:57,566
TEAM WHO DID THE BULK OF THE 

4633
03:26:57,566 --> 03:27:04,406
WORK.

4634
03:27:04,406 --> 03:27:14,583
THANK YOU.

4635
03:27:16,318 --> 03:27:19,554
IVANO VA I SEE YOUR HAND UP BUT 

4636
03:27:19,554 --> 03:27:20,822
WE'RE HOLD OFF ON QUESTIONS 

4637
03:27:20,822 --> 03:27:23,558
UNTIL ALL THE PANELISTS SPEAK.

4638
03:27:23,558 --> 03:27:33,668
OKAY.

4639
03:27:36,738 --> 03:27:45,313
>> THANK YOU FOR ALLOWING
ME TO 

4640
03:27:45,313 --> 03:27:51,586
PRESENT IN SUPPORTING AUTISTIC 

4641
03:27:51,586 --> 03:27:53,622
INDIVIDUALS WITH TRAUMATIC 

4642
03:27:53,622 --> 03:27:56,024
STRESS ACROSS THE LIFE SPAN AND 

4643
03:27:56,024 --> 03:27:58,060
THERE'S EXPERIENCES OF ADVERSITY

4644
03:27:58,060 --> 03:27:59,995
WHICH CAN INVOLVE MANY DIFFERENT

4645
03:27:59,995 --> 03:28:01,663
THINGS BUT TODAY I'LL BE TALKING

4646
03:28:01,663 --> 03:28:04,366
ABOUT TRAUMATIC EVENTS.

4647
03:28:04,366 --> 03:28:10,539
THOSE THAT CAN LEAD TO 

4648
03:28:10,539 --> 03:28:11,573
POSTTRAUMATIC SUPPRESS DISORDER 

4649
03:28:11,573 --> 03:28:15,477
AND TRAUMATIC STRESS AND I'LL 

4650
03:28:15,477 --> 03:28:19,414
ALSO TOUCH ON ADVERSE CHILDHOOD 

4651
03:28:19,414 --> 03:28:20,882
EXPERIENCES MORE BROADLY THE 

4652
03:28:20,882 --> 03:28:22,451
WIDER SET OF NEGATIVE 

4653
03:28:22,451 --> 03:28:31,560
EXPERIENCES THAT CAN ALSO 

4654
03:28:31,560 --> 03:28:35,263
INFLUENCE HEALTH.

4655
03:28:35,263 --> 03:28:39,468
LITTLE RESEARCH HAS EXAMINED 

4656
03:28:39,468 --> 03:28:42,070
AUTISTIC PEOPLE OR SUPPORT 

4657
03:28:42,070 --> 03:28:43,705
PEOPLE AFTER ADVERSITY.

4658
03:28:43,705 --> 03:28:45,440
I'LL SHARE OUR BASIC RESEARCH 

4659
03:28:45,440 --> 03:28:46,541
TRYING TO BETTER UNDERSTAND THE 

4660
03:28:46,541 --> 03:28:52,147
TYPES OF TRAUMATIC EXPERIENCES 

4661
03:28:52,147 --> 03:28:55,584
AUTISTIC PEOPLE FACE OVER THE 

4662
03:28:55,584 --> 03:29:01,223
LIFE SPAN TO AND DEVELOP 

4663
03:29:01,223 --> 03:29:07,562
SUPPORTS FOR AUTISTIC PEOPLE IN 

4664
03:29:07,562 --> 03:29:09,064
REDUCING TRAUMATIC STRESS AND 

4665
03:29:09,064 --> 03:29:11,566
TOUCH ON THIS AREA.

4666
03:29:11,566 --> 03:29:16,805
IN TERMS OF THE FIRST AIM, 

4667
03:29:16,805 --> 03:29:18,473
LOOKING AT THE TYPES OF 

4668
03:29:18,473 --> 03:29:19,841
TRAUMATIC EXPERIENCES WE SEE THE

4669
03:29:19,841 --> 03:29:22,844
FIRST PAPER WAS THE SOUTH 

4670
03:29:22,844 --> 03:29:24,045
CAROLINA ADAM DATA SET PUBLISHED

4671
03:29:24,045 --> 03:29:26,314
IN 2019 AND THIS WAS CONDUCTED 

4672
03:29:26,314 --> 03:29:27,849
WITH COLLEAGUES AT THE MEDICAL 

4673
03:29:27,849 --> 03:29:31,586
UNIVERSITY OF SOUTH CAROLINA.

4674
03:29:31,586 --> 03:29:33,889
WHAT WE WERE ABLE TO DO WAS LINK

4675
03:29:33,889 --> 03:29:36,191
THE INFORMATION FROM THE ADAM 

4676
03:29:36,191 --> 03:29:38,894
DATA SET WITH DATA FROM THE 

4677
03:29:38,894 --> 03:29:40,662
SOUTH CAROLINA DEPARTMENT OF 

4678
03:29:40,662 --> 03:29:42,964
SOCIAL SERVICES IN TERMS OF 

4679
03:29:42,964 --> 03:29:45,567
REPORTS OF ABUSE AND NEGLECT TO 

4680
03:29:45,567 --> 03:29:46,268
THAT CENTER.

4681
03:29:46,268 --> 03:29:49,171
SO FOR A VERY QUICK OVERVIEW, 

4682
03:29:49,171 --> 03:29:51,039
WHAT WE SEE HERE IS RELATIVE TO 

4683
03:29:51,039 --> 03:29:55,410
THE NON-AUTISTIC COMPARISON 

4684
03:29:55,410 --> 03:29:57,012
GROUP WE SEE A SIGNIFICANTLY 

4685
03:29:57,012 --> 03:30:01,349
HIGHER RATE OF ANY REPORT OF 

4686
03:30:01,349 --> 03:30:03,318
MALTREATMENT IN AUTISTIC YOUTH, 

4687
03:30:03,318 --> 03:30:05,220
OVER 1 IN 5 REPORTED SOME 

4688
03:30:05,220 --> 03:30:07,556
MALTREATMENT AND WE SEE AN EVEN 

4689
03:30:07,556 --> 03:30:11,126
HIGHER AND SIGNIFICANTLY HIGHER 

4690
03:30:11,126 --> 03:30:13,361
RATE FOR AUTISTIC YOUTH WITH 

4691
03:30:13,361 --> 03:30:13,895
INTELLECTUAL DISABILITY.

4692
03:30:13,895 --> 03:30:17,032
ALMOST 1 IN 3 IN THE SAMPLE 

4693
03:30:17,032 --> 03:30:17,599
HAVING SOME EXPERIENCE OF 

4694
03:30:17,599 --> 03:30:27,209
REPORTED MALTREATMENT.

4695
03:30:27,209 --> 03:30:29,811
AND TRY TO INFORM PREVENTION 

4696
03:30:29,811 --> 03:30:30,145
TECHNOLOGIES.

4697
03:30:30,145 --> 03:30:33,415
WE SEE THE ODDS RASHS.

4698
03:30:33,415 --> 03:30:35,483
HOW MUCH MORE LIKELY AUTISTIC 

4699
03:30:35,483 --> 03:30:36,918
USE WITH AND WITHOUT 

4700
03:30:36,918 --> 03:30:38,053
INTELLECTUAL ABILITY WERE TO 

4701
03:30:38,053 --> 03:30:41,323
EXPERIENCE THE FORMS OF ABUSE 

4702
03:30:41,323 --> 03:30:41,756
AND NEGLECT.

4703
03:30:41,756 --> 03:30:43,825
SO THERE ARE SOME DIFFERENCES 

4704
03:30:43,825 --> 03:30:45,961
WHICH I THINK COULD HELP 

4705
03:30:45,961 --> 03:30:47,295
PINPOINT AREAS OF SUPPORT FOR 

4706
03:30:47,295 --> 03:30:50,966
CHILD PROTECTIVE SERVICES AND 

4707
03:30:50,966 --> 03:30:53,535
RELATED OFFICES BUT SOME NUMBERS

4708
03:30:53,535 --> 03:30:56,571
ARE STRIKINGLY HIGH AS HIGH AS 

4709
03:30:56,571 --> 03:30:58,640
OVER THREE TIMES MORE LIKELY TO 

4710
03:30:58,640 --> 03:30:59,140
EXPERIENCE THE FORMS OF 

4711
03:30:59,140 --> 03:31:03,912
MALTREATMENT.

4712
03:31:03,912 --> 03:31:05,614
BECAUSE WE KNOW REPORTS TO 

4713
03:31:05,614 --> 03:31:06,615
SOCIAL SERVICES WILL NOT CAPTURE

4714
03:31:06,615 --> 03:31:08,049
EVERYONE WE LOOKED AT THIS IN 

4715
03:31:08,049 --> 03:31:12,153
OTHER WAYS AND IN OTHER SAMPLES.

4716
03:31:12,153 --> 03:31:14,389
THIS WAS A SAMPLE WHERE WE USED 

4717
03:31:14,389 --> 03:31:15,457
CAREGIVER REPORT.

4718
03:31:15,457 --> 03:31:17,759
CAREGIVERS REPORTING ON THE 

4719
03:31:17,759 --> 03:31:20,028
ADVERSITY THEY'RE AUTISTIC 

4720
03:31:20,028 --> 03:31:21,663
CHILDREN HAD EXPERIENCED 

4721
03:31:21,663 --> 03:31:23,565
RELATIVE TO A NON-AUTISTIC 

4722
03:31:23,565 --> 03:31:24,065
COMPARISON SAMPLE.

4723
03:31:24,065 --> 03:31:25,667
THIS ECHOES WHAT HAS BEEN SHARED

4724
03:31:25,667 --> 03:31:27,569
TODAY THAT IN ADDITION TO 

4725
03:31:27,569 --> 03:31:29,537
EXPERIENCES OF ABUSE AND NEGLECT

4726
03:31:29,537 --> 03:31:32,440
OR MALTREATMENT, WE ALSO SEE 

4727
03:31:32,440 --> 03:31:33,975
VERY HIGH AND SIGNIFICANTLY 

4728
03:31:33,975 --> 03:31:35,577
HIGHER RATES OF ALL OF THE 

4729
03:31:35,577 --> 03:31:37,746
BROADER FORMS OF ADVERSE 

4730
03:31:37,746 --> 03:31:38,380
CHILDHOOD EXPERIENCES WE TALKED 

4731
03:31:38,380 --> 03:31:42,584
ABOUT.

4732
03:31:42,584 --> 03:31:48,423
WE HAVE ALSO ASKED AUTISTIC 

4733
03:31:48,423 --> 03:31:50,825
ADULTS ABOUT THEIR EXPERIENCES 

4734
03:31:50,825 --> 03:31:58,199
WE SEE SIMILAR THAT TAUAUTISTIC 

4735
03:31:58,199 --> 03:31:59,834
ADULTS REPORT A HIGHER NUMBER OF

4736
03:31:59,834 --> 03:32:01,636
INCIDENTS THAT THEY WITNESSED OR

4737
03:32:01,636 --> 03:32:02,771
LEARNED HAPPENED TO OTHER PEOPLE

4738
03:32:02,771 --> 03:32:06,374
IN THEIR LIFE AND REPORT HIGHER 

4739
03:32:06,374 --> 03:32:07,575
LEVELS OF ALL TYPE OF PTSD 

4740
03:32:07,575 --> 03:32:13,381
SYMPTOMS.

4741
03:32:13,381 --> 03:32:14,783
I'D LIKE TO ALSO ACKNOWLEDGE I 

4742
03:32:14,783 --> 03:32:16,651
THINK THE DATA IS IMPORTANT TO 

4743
03:32:16,651 --> 03:32:19,054
SHOW AND EMPHASIZE THE NEED FOR 

4744
03:32:19,054 --> 03:32:20,722
TRAUMA-INFORMED SERVICES BUT I 

4745
03:32:20,722 --> 03:32:21,723
THINK IT'S ALSO CONSISTENT WITH 

4746
03:32:21,723 --> 03:32:26,761
WHAT MANY ADVOCATES HAVE BEEN 

4747
03:32:26,761 --> 03:32:29,998
SAYING FOR A LONG TIME AND 

4748
03:32:29,998 --> 03:32:31,266
CONSISTENT WITH THE GROWING BODY

4749
03:32:31,266 --> 03:32:33,301
OF RESEARCH AND IT'S TAKEN OFF 

4750
03:32:33,301 --> 03:32:34,436
IN THE LAST FIVE YEARS WHERE 

4751
03:32:34,436 --> 03:32:37,639
MANY RESEARCH GROUPS ARE FINDING

4752
03:32:37,639 --> 03:32:38,406
THIS.

4753
03:32:38,406 --> 03:32:42,010
WE SEE HIGH RATES OF TRAUMA AND 

4754
03:32:42,010 --> 03:32:44,646
PTSD AND SEE HIGHER RATES OF 

4755
03:32:44,646 --> 03:32:45,747
TRAUMATIC STRESS SYMPTOMS MORE 

4756
03:32:45,747 --> 03:32:47,248
BROADLY AND BECAUSE TO DATE WE 

4757
03:32:47,248 --> 03:32:49,784
KNOW THERE'S BARRIERS TO 

4758
03:32:49,784 --> 03:32:52,087
ACCESSING MENTAL HEALTH CARE AND

4759
03:32:52,087 --> 03:32:53,888
THERE'S LITTLE RESEARCH DONE ON 

4760
03:32:53,888 --> 03:32:54,823
TRAUMATIC FOCUSSED THERAPIES IN 

4761
03:32:54,823 --> 03:32:57,792
PARTICULAR IT'S LIKELY UNTREATED

4762
03:32:57,792 --> 03:33:02,697
PTSD I THINK QUITE COMMON FOR 

4763
03:33:02,697 --> 03:33:04,632
AUTISTIC PEOPLE AND CAN BE ONE 

4764
03:33:04,632 --> 03:33:06,468
FACTOR CONTRIBUTING TO HEALTH 

4765
03:33:06,468 --> 03:33:08,236
DISPARITIES ACROSS THE LIFE 

4766
03:33:08,236 --> 03:33:08,436
SPAN.

4767
03:33:08,436 --> 03:33:09,738
WE FEEL EVALUATING INTERVENTIONS

4768
03:33:09,738 --> 03:33:14,209
IN THIS SPACE IS ONE REALLY 

4769
03:33:14,209 --> 03:33:14,809
IMPORTANT PRIORITY TO ADDRESS 

4770
03:33:14,809 --> 03:33:16,611
THIS PROBLEM.

4771
03:33:16,611 --> 03:33:22,851
SO TO SHARE OF WHAT WE HAVE DONE

4772
03:33:22,851 --> 03:33:26,955
IN THIS AREA I'LL WALK YOU 

4773
03:33:26,955 --> 03:33:28,757
THROUGH HIGHLIGHTS OF THE 

4774
03:33:28,757 --> 03:33:29,491
PROGRAM EVALUATION RESEARCH 

4775
03:33:29,491 --> 03:33:31,926
WE'VE BEEN UNFORTUNATE TO START 

4776
03:33:31,926 --> 03:33:32,327
RECENTLY.

4777
03:33:32,327 --> 03:33:34,763
THE FIRST OF THE SMALL PILOT 

4778
03:33:34,763 --> 03:33:36,831
FEASIBILITY STUDY FUNDED THROUGH

4779
03:33:36,831 --> 03:33:38,032
THE ORGANIZATION FOR AUTISM 

4780
03:33:38,032 --> 03:33:41,302
RESEARCH TO SEE WHETHER 

4781
03:33:41,302 --> 03:33:43,571
TRAUMA-FOCUSSED COGNITIVE 

4782
03:33:43,571 --> 03:33:49,844
BEHAVIORAL THERAPY OR TFCBT IS 

4783
03:33:49,844 --> 03:33:55,150
GOOD FOR AUTISTIC YOUTH AND THAT

4784
03:33:55,150 --> 03:33:56,284
EVIDENCE BUT NOT AS MUCH DATA TO

4785
03:33:56,284 --> 03:33:58,353
SEE IF IT'S HELPFUL FOR AUTISTIC

4786
03:33:58,353 --> 03:34:00,922
YOUTH AND TESTED WITH FOR 

4787
03:34:00,922 --> 03:34:01,923
CHILDREN BETWEEN 10 AND 17 AND 

4788
03:34:01,923 --> 03:34:03,358
RAN THE PILOT STUDY OVER 

4789
03:34:03,358 --> 03:34:10,899
TELEHEALTH.

4790
03:34:10,899 --> 03:34:14,502
WE GOT RESULT AND IN THE PILOT 

4791
03:34:14,502 --> 03:34:17,539
SAMPLE OF 17 WE SEE SIGNIFICANT 

4792
03:34:17,539 --> 03:34:20,975
PRE TO POST REDUCTIONS IN YOUTH 

4793
03:34:20,975 --> 03:34:22,444
PTSD SYMPTOMS AND THIS IS BOTH 

4794
03:34:22,444 --> 03:34:24,145
WHEN WE ASK PARENTS OR 

4795
03:34:24,145 --> 03:34:26,047
CAREGIVERS TO REPORT ON CHILD 

4796
03:34:26,047 --> 03:34:31,453
SYMPTOMS AND ALSO WHEN CHILDREN 

4797
03:34:31,453 --> 03:34:33,021
REPORTED ON THEIR OWN SYMPTOMS.

4798
03:34:33,021 --> 03:34:38,059
AND THESE WERE MAINTAINED TO THE

4799
03:34:38,059 --> 03:34:42,564
SAME SIZE AND ONE MONTH POST 

4800
03:34:42,564 --> 03:34:44,065
SUGGESTING PROMISE FOR REDUCING 

4801
03:34:44,065 --> 03:34:47,569
PTSD AND WHAT WAS PROMISING WE 

4802
03:34:47,569 --> 03:34:49,237
SAW IMPROVEMENTS IN THE BROADER 

4803
03:34:49,237 --> 03:34:51,940
NET OF TRAUMATIC STRESS BROADLY 

4804
03:34:51,940 --> 03:34:53,808
WE SAW REDUCTION IN YOUTH 

4805
03:34:53,808 --> 03:34:57,011
DEPRESSION, ANXIETY.

4806
03:34:57,011 --> 03:34:59,214
WE SAW EMOTION REGULATION 

4807
03:34:59,214 --> 03:34:59,881
CONSISTENT WITH THE OTHER WORK 

4808
03:34:59,881 --> 03:35:02,750
WE'VE BEEN TALKING ABOUT AND 

4809
03:35:02,750 --> 03:35:04,519
IMPROVEMENTS IN PARENTING AND 

4810
03:35:04,519 --> 03:35:05,353
RESILIENCE OUTCOMES.

4811
03:35:05,353 --> 03:35:08,056
A LOT OF PROMISE TO THIS 

4812
03:35:08,056 --> 03:35:09,924
INTERVENTION TO EVALUATE IN MORE

4813
03:35:09,924 --> 03:35:13,528
DETAIL MOVING FORWARD AND WE'RE 

4814
03:35:13,528 --> 03:35:15,029
TRYING TO BETTER UNDERSTAND HOW 

4815
03:35:15,029 --> 03:35:18,333
THIS PROGRAM WORKS SO WE CAN 

4816
03:35:18,333 --> 03:35:20,068
OPTIMIZE IT MOVING FORWARD AND 

4817
03:35:20,068 --> 03:35:21,703
ONE OF THE WAYS WE'RE DOING THAT

4818
03:35:21,703 --> 03:35:23,404
IS THROUGH THE FEEDBACK WE'VE 

4819
03:35:23,404 --> 03:35:27,542
GOTTEN FROM CAREGIVERS AND YOUTH

4820
03:35:27,542 --> 03:35:28,810
THEMSELVES ABOUT THE PROGRAM I 

4821
03:35:28,810 --> 03:35:31,246
WON'T GO THROUGH THIS IN DETAIL 

4822
03:35:31,246 --> 03:35:33,248
BUT HERE A 5 WOULD HAVE BEEN THE

4823
03:35:33,248 --> 03:35:34,883
HIGHEST LEVEL OF SATISFACTION 

4824
03:35:34,883 --> 03:35:37,185
RECORDING THIS PARTICULAR 

4825
03:35:37,185 --> 03:35:37,585
DOMAIN.

4826
03:35:37,585 --> 03:35:39,988
OVER ALL, WE DON'T THINK THE 

4827
03:35:39,988 --> 03:35:40,755
PROGRAM WILL BE FOR EVERYONE BUT

4828
03:35:40,755 --> 03:35:46,961
WE DID THINK IT WAS A PROMISING 

4829
03:35:46,961 --> 03:35:48,997
FINDING SO FAR TO WARRANT THE 

4830
03:35:48,997 --> 03:35:50,565
STUDY AND LARGER TRIALS OF THE 

4831
03:35:50,565 --> 03:35:51,165
PROGRAM.

4832
03:35:51,165 --> 03:35:53,835
WE ALSO JUST RECEIVED PILOT FUND

4833
03:35:53,835 --> 03:35:56,971
FROM THE WYOMING PROGRAM THROUGH

4834
03:35:56,971 --> 03:36:00,041
NIGMS TO START A PILOT 

4835
03:36:00,041 --> 03:36:02,043
FEASIBILITY EVALUATION OF A 

4836
03:36:02,043 --> 03:36:03,144
NARRATIVE-BASED SUPPORT PROGRAM 

4837
03:36:03,144 --> 03:36:04,178
FOR AUTISTIC ADULTS.

4838
03:36:04,178 --> 03:36:08,283
SO THIS WILL BE A SIMILAR 

4839
03:36:08,283 --> 03:36:10,118
PRE-POST FEASIBILITY DESIGN AND 

4840
03:36:10,118 --> 03:36:11,986
WE'RE INTERESTED WHETHER WE SEE 

4841
03:36:11,986 --> 03:36:14,055
IMPROVEMENTS IN MENTAL HEALTH 

4842
03:36:14,055 --> 03:36:16,457
AND PHYSICAL HEALTH OUTCOMES 

4843
03:36:16,457 --> 03:36:18,293
WE'LL BE ASSESSING USING FITBIT 

4844
03:36:18,293 --> 03:36:18,526
DEVICES.

4845
03:36:18,526 --> 03:36:19,594
WE'RE EXCITED TO GET STARTED ON 

4846
03:36:19,594 --> 03:36:21,296
THIS NOW.

4847
03:36:21,296 --> 03:36:23,064
SO FINISHING BRIEFLY WITH SOME 

4848
03:36:23,064 --> 03:36:23,798
OF OUR FUTURE DIRECTIONS IN THIS

4849
03:36:23,798 --> 03:36:27,835
AREA.

4850
03:36:27,835 --> 03:36:30,238
SO I'VE SPOKEN MOSTLY TODAY 

4851
03:36:30,238 --> 03:36:33,374
ABOUT TRAM AT EXPERIENCES, 

4852
03:36:33,374 --> 03:36:34,609
STRESSFUL EXPERIENCES AND WE'RE 

4853
03:36:34,609 --> 03:36:36,511
DOING WORK TO BETTER UNDERSTAND 

4854
03:36:36,511 --> 03:36:40,548
WHAT ARE THE POSITIVE CHILDHOOD 

4855
03:36:40,548 --> 03:36:41,316
EXPERIENCES THAT AUTISTIC PEOPLE

4856
03:36:41,316 --> 03:36:43,985
AND FAMILIES VALUE AND PROMOTE 

4857
03:36:43,985 --> 03:36:49,924
THOSE IN INTERVENTIONS.

4858
03:36:49,924 --> 03:36:53,528
WE'VE LOOKED AT HOW CAREGIVER 

4859
03:36:53,528 --> 03:36:56,864
TRAUMA RELATES TO INDIVIDUAL 

4860
03:36:56,864 --> 03:37:01,235
TRAUMA AND UNDERSTANDING 

4861
03:37:01,235 --> 03:37:02,070
INTERGENERATIONAL STRESS OVER 

4862
03:37:02,070 --> 03:37:05,873
TIME AND WE'RE COMMITTED TO 

4863
03:37:05,873 --> 03:37:06,541
UNDERSTANDING AND WORKING WITHIN

4864
03:37:06,541 --> 03:37:08,576
THE SYSTEMS OF CARE IN WHICH 

4865
03:37:08,576 --> 03:37:11,579
AUTISTIC PEOPLE SHOULD BE ABLE 

4866
03:37:11,579 --> 03:37:13,314
TO ACCESS SERVICES.

4867
03:37:13,314 --> 03:37:15,283
IN ADULTS ONE THING WE SPENT 

4868
03:37:15,283 --> 03:37:18,586
TIME ON IS HEALTH CARE SERVICES 

4869
03:37:18,586 --> 03:37:19,887
AND PREGNANCY SERVICES IN 

4870
03:37:19,887 --> 03:37:20,188
PARTICULAR.

4871
03:37:20,188 --> 03:37:22,390
SO WE'VE HEARD A LOT IN OUR WORK

4872
03:37:22,390 --> 03:37:24,926
ABOUT THE MEDICAL TRAUMA THAT 

4873
03:37:24,926 --> 03:37:26,094
MANY AUTISTIC ADULTS CAN 

4874
03:37:26,094 --> 03:37:29,631
EXPERIENCE AND THE NEED TO 

4875
03:37:29,631 --> 03:37:30,632
BETTER UNDERSTAND THOSE 

4876
03:37:30,632 --> 03:37:33,601
EXPERIENCES TO INCLUDE THEM AND 

4877
03:37:33,601 --> 03:37:36,904
I'VE BEEN FORTUNATE TO PARTNER 

4878
03:37:36,904 --> 03:37:39,574
WITH AN ADVOCATE TRYING TO 

4879
03:37:39,574 --> 03:37:41,142
DEVELOP RESOURCES FOR AUTISTIC 

4880
03:37:41,142 --> 03:37:42,910
PEOPLE ABOUT PREGNANCY RELATED 

4881
03:37:42,910 --> 03:37:43,244
HEALTH CARE.

4882
03:37:43,244 --> 03:37:44,078
THAT'S ONE THING WE'RE SPENDING 

4883
03:37:44,078 --> 03:37:54,288
TIME ON NOW.

4884
03:37:54,489 --> 03:37:57,158
WE'RE HOPING TO MOVE THE 

4885
03:37:57,158 --> 03:37:58,993
RESEARCH AND TOPICS OUT TO 

4886
03:37:58,993 --> 03:38:00,061
COMMUNITY SETTING WITH THE 

4887
03:38:00,061 --> 03:38:00,628
AUTISTIC COMMUNITY.

4888
03:38:00,628 --> 03:38:03,731
I WILL STOP THERE BUT PLEASE 

4889
03:38:03,731 --> 03:38:05,433
REACH OUT IF Y'ALL HAVE 

4890
03:38:05,433 --> 03:38:06,100
QUESTIONS OR INTERESTS.

4891
03:38:06,100 --> 03:38:08,069
WE'RE LOOKING FORWARD TO 

4892
03:38:08,069 --> 03:38:09,504
CONTINUING TO BETTER UNDERSTAND 

4893
03:38:09,504 --> 03:38:11,272
THESE PROGRAMS TO MAKE SURE TO 

4894
03:38:11,272 --> 03:38:11,906
DISSEMINATE THEM IN MEANINGFUL 

4895
03:38:11,906 --> 03:38:13,775
WAYS MOVING FORWARD.

4896
03:38:13,775 --> 03:38:16,044
AND I'LL BRIEFLY ACKNOWLEDGE THE

4897
03:38:16,044 --> 03:38:17,979
FUNDERS AGAIN AND ORGANIZATION 

4898
03:38:17,979 --> 03:38:27,055
FOR AUTISM RESEARCH AND WYOMING 

4899
03:38:27,055 --> 03:38:28,723
PROGRAMS AND THE RESEARCH 

4900
03:38:28,723 --> 03:38:30,358
NETWORK FUNDED THROUGH PCORI AND

4901
03:38:30,358 --> 03:38:32,060
WANT TO ACKNOWLEDGE THE GRADUATE

4902
03:38:32,060 --> 03:38:33,628
STUDENTS ON THE WORK EACH DOING 

4903
03:38:33,628 --> 03:38:35,997
EXCITING WORK IN THIS AREA AS 

4904
03:38:35,997 --> 03:38:36,364
WELL.

4905
03:38:36,364 --> 03:38:38,232
SO I THINK I'LL TURN IT OVER TO 

4906
03:38:38,232 --> 03:38:48,409
DR. BECK.

4907
03:38:54,716 --> 03:38:59,554
>> HI, THANK YOU TO THE
IACC 

4908
03:38:59,554 --> 03:39:00,855
LEADERS FOR INVITING ME TO SPEAK

4909
03:39:00,855 --> 03:39:01,856
TODAY AND WHAT GREAT WORK MY 

4910
03:39:01,856 --> 03:39:03,858
COLLEAGUES HAVE PRESENTED SO 

4911
03:39:03,858 --> 03:39:04,258
FAR.

4912
03:39:04,258 --> 03:39:06,160
MY TALK WILL BE ABOUT 

4913
03:39:06,160 --> 03:39:07,361
PERSPECTIVES FROM AUTISTIC 

4914
03:39:07,361 --> 03:39:11,766
PEOPLE, PARENT AND CLINICIANS ON

4915
03:39:11,766 --> 03:39:14,068
MENTAL HEALTH INTERVENTIONS AND 

4916
03:39:14,068 --> 03:39:24,312
AREAS OF NEED.

4917
03:39:26,681 --> 03:39:29,917
SO THE WORK I'M GOING TO TALK 

4918
03:39:29,917 --> 03:39:31,385
ABOUT TODAY IS SOME STEPS TO 

4919
03:39:31,385 --> 03:39:33,054
TAKE ALL THE GREAT WORK YOU 

4920
03:39:33,054 --> 03:39:35,189
HEARD AND HOW DO WE TRANSLATE IT

4921
03:39:35,189 --> 03:39:35,656
TO THE COMMUNITY.

4922
03:39:35,656 --> 03:39:37,892
THE PURPOSE OF THIS STUDY THAT 

4923
03:39:37,892 --> 03:39:41,028
WE CONDUCTED WAS TO UNDERSTAND 

4924
03:39:41,028 --> 03:39:43,564
INTERVENTION NEEDS AND BARRIERS 

4925
03:39:43,564 --> 03:39:45,099
FOR AUTISTIC PEOPLE AND 

4926
03:39:45,099 --> 03:39:45,600
COMMUNITY HEALTH CARE.

4927
03:39:45,600 --> 03:39:47,969
SOME OF THE QUESTIONS WE WERE 

4928
03:39:47,969 --> 03:39:50,705
INTERESTED IN ARE WHY ARE 

4929
03:39:50,705 --> 03:39:52,406
AUTISTIC PEOPLE SEEKING MENTAL 

4930
03:39:52,406 --> 03:39:54,575
HEALTH CARE.

4931
03:39:54,575 --> 03:39:56,778
WHAT CONTRIBUTE TO EMOTION 

4932
03:39:56,778 --> 03:39:57,712
DYSREGULATION IN DAILY LIFE 

4933
03:39:57,712 --> 03:39:59,480
SINCE IT RELATE TO MENTAL HEALTH

4934
03:39:59,480 --> 03:40:04,585
AND SUICIDALITY AND AGGRESSION 

4935
03:40:04,585 --> 03:40:07,588
AND WHAT IS HELPFUL AND WHAT 

4936
03:40:07,588 --> 03:40:09,657
BARRIERS PREVENT INTERVENTIONS 

4937
03:40:09,657 --> 03:40:10,758
FROM BEING HELPFUL.

4938
03:40:10,758 --> 03:40:14,162
THIS WAS A QUALITATIVE STUDY 

4939
03:40:14,162 --> 03:40:16,597
WHICH IS A USEFUL DESIGN TO HEAR

4940
03:40:16,597 --> 03:40:22,003
STORIES FROM ACROSS THE AUTISM 

4941
03:40:22,003 --> 03:40:22,603
COMMUN

4942
03:40:22,603 --> 03:40:22,870
COMMUNITY.

4943
03:40:22,870 --> 03:40:25,406
WE CAN INFORM FUTURE RESEARCH 

4944
03:40:25,406 --> 03:40:27,575
DESIGN AND TEST BROADER SAMPLE.

4945
03:40:27,575 --> 03:40:29,710
WE TALKED TO 55 INDIVIDUALS.

4946
03:40:29,710 --> 03:40:31,579
YOU'LL SEE HERE THERE WERE FOUR 

4947
03:40:31,579 --> 03:40:32,113
DIFFERENT GROUPS.

4948
03:40:32,113 --> 03:40:35,416
WE TALKED TO AUTISTIC ADULTS 

4949
03:40:35,416 --> 03:40:37,652
RANGE FROM 21 TO 68.

4950
03:40:37,652 --> 03:40:41,389
WE TALKED TO AUTISTIC TEENAGERS 

4951
03:40:41,389 --> 03:40:42,924
AND TALKED TO CAREGIVERS AND 

4952
03:40:42,924 --> 03:40:43,357
PATIENTS.

4953
03:40:43,357 --> 03:40:44,725
50% OF THAT GROUP HAD CHILDREN 

4954
03:40:44,725 --> 03:40:47,962
THAT WERE NON-SPEAKING OR HAD 

4955
03:40:47,962 --> 03:40:49,197
SEVERE SELF-INJURY AND 

4956
03:40:49,197 --> 03:40:49,664
AGGRESSION.

4957
03:40:49,664 --> 03:40:51,566
AND WE TALKED TO 16 COMMUNITY 

4958
03:40:51,566 --> 03:41:00,441
MENTAL HEALTH PROVIDERS.

4959
03:41:00,441 --> 03:41:02,043
SO IS THE FIRST THEME WAS WHAT 

4960
03:41:02,043 --> 03:41:03,911
WERE THE REASONS FOR SEEKING 

4961
03:41:03,911 --> 03:41:04,846
MENTAL HEALTH CARE.

4962
03:41:04,846 --> 03:41:08,382
THESE WERE THE TOP THREE ACROSS 

4963
03:41:08,382 --> 03:41:11,586
THE GROUPS WAS EMOTION 

4964
03:41:11,586 --> 03:41:12,720
DYSREGULATION WE HEARD ABOUT 

4965
03:41:12,720 --> 03:41:14,856
TODAY MANY TIMES AND HOW IT RELS

4966
03:41:14,856 --> 03:41:16,791
TO OTHER BEHAVIORS AND EX TERM 

4967
03:41:16,791 --> 03:41:18,926
BEHAVIORS AND SUICIDALITY.

4968
03:41:18,926 --> 03:41:21,362
ONE INTERESTING THING WE WEREN'T

4969
03:41:21,362 --> 03:41:22,330
EXPECTING GOING INTO THIS WAS 

4970
03:41:22,330 --> 03:41:25,199
THERE WAS A LARGE FOCUS AMONG 

4971
03:41:25,199 --> 03:41:27,568
THE INDIVIDUALS IN THE STUDY 

4972
03:41:27,568 --> 03:41:30,104
TALKING ABOUT HOW SENSORY NEEDS 

4973
03:41:30,104 --> 03:41:32,073
AND SENSITIVITIES CONTRIBUTES TO

4974
03:41:32,073 --> 03:41:34,141
EMOTION DYSREGULATION AND HOW 

4975
03:41:34,141 --> 03:41:36,010
THE NEED FOR THAT IN MENTAL 

4976
03:41:36,010 --> 03:41:37,778
HEALTH CARE AND SIMILAR TO THE 

4977
03:41:37,778 --> 03:41:40,514
TALK WE JUST HEARD AS TRAUMA AND

4978
03:41:40,514 --> 03:41:42,350
CHRONIC INVALIDATION WAS A TOP 

4979
03:41:42,350 --> 03:41:43,918
REASON FOR SEEKING COMMUNITY 

4980
03:41:43,918 --> 03:41:48,522
CARE.

4981
03:41:48,522 --> 03:41:51,592
I'LL HIGHLIGHT QUOTES AND THIS 

4982
03:41:51,592 --> 03:41:53,094
IS FROM A 21-YEAR-OLD AUTISTIC 

4983
03:41:53,094 --> 03:41:53,327
MAN.

4984
03:41:53,327 --> 03:41:57,398
I WANT PEOPLE TO KNOW HOW 

4985
03:41:57,398 --> 03:41:58,065
CRIPPLINGLY LONELY I AM.

4986
03:41:58,065 --> 03:42:00,434
ALL I'VE KNOWN IS GASLIGHTING, 

4987
03:42:00,434 --> 03:42:03,104
LIES, HATRED, PHYSICAL AND 

4988
03:42:03,104 --> 03:42:05,473
PSYCHOLOGICAL ABUSE SO I 

4989
03:42:05,473 --> 03:42:07,575
UNFORTUNATELY DO NOT HAVE HIGH 

4990
03:42:07,575 --> 03:42:11,779
SELF-ESTEEM OR SELF-CARE.

4991
03:42:11,779 --> 03:42:15,182
THIS IS FROM A COMMUNITY MENTAL 

4992
03:42:15,182 --> 03:42:15,583
HEALTH THERAPIST.

4993
03:42:15,583 --> 03:42:18,286
THEY'RE HURT SO BAD BY PEOPLE.

4994
03:42:18,286 --> 03:42:21,155
IT'S LIKE TOUCHING A STOVE A 

4995
03:42:21,155 --> 03:42:22,089
THOUSAND TYPES.

4996
03:42:22,089 --> 03:42:23,591
AT SOME POINT YOU QUIT TOUCHING 

4997
03:42:23,591 --> 03:42:24,191
THE STOVE.

4998
03:42:24,191 --> 03:42:26,093
YOU DON'T WANT A STOVE BECAUSE 

4999
03:42:26,093 --> 03:42:30,998
IT'S DANGEROUS.

5000
03:42:30,998 --> 03:42:33,935
AND WE ASKED FOLKS TO TELL US 

5001
03:42:33,935 --> 03:42:34,168
STORIES.

5002
03:42:34,168 --> 03:42:36,337
WE ASKED THEM TO TELL A STORY OF

5003
03:42:36,337 --> 03:42:38,472
A RECENT TIME YOU FELT OUT OF 

5004
03:42:38,472 --> 03:42:43,044
CONTROL WITH STRONG EMOTIONS AND

5005
03:42:43,044 --> 03:42:45,479
AND IN ADULT GROUP NEARLY EVERY 

5006
03:42:45,479 --> 03:42:49,083
PARTICIPANT SHARED A STORY OF A 

5007
03:42:49,083 --> 03:42:50,952
MELTDOWN OR EMOTION 

5008
03:42:50,952 --> 03:42:51,619
DYSREGULATION THAT OCCURRED ON 

5009
03:42:51,619 --> 03:42:55,923
THE WAY TO OR IN A HEALTH CARE 

5010
03:42:55,923 --> 03:42:56,190
SETTING.

5011
03:42:56,190 --> 03:42:58,392
SOMEONE EARLIER MENTIONED 

5012
03:42:58,392 --> 03:42:58,626
ACCESS.

5013
03:42:58,626 --> 03:43:00,928
ACCESSING HEALTH CARE WAS SO 

5014
03:43:00,928 --> 03:43:04,498
STRESSFUL TO GET THERE AND 

5015
03:43:04,498 --> 03:43:06,600
INTERACTING WITH THE DIFFERENT 

5016
03:43:06,600 --> 03:43:08,336
WELL-MEANING HEALTH CARE 

5017
03:43:08,336 --> 03:43:09,403
PROVIDERS WAS NOT A SMOOTH 

5018
03:43:09,403 --> 03:43:13,207
PROCESS AND OFTEN RESULTED IN 

5019
03:43:13,207 --> 03:43:17,945
PRETTY SIGNIFICANT TROUBLES.

5020
03:43:17,945 --> 03:43:20,081
THE TEENAGERS FREQUENTLY 

5021
03:43:20,081 --> 03:43:21,515
EXPERIENCED DYSREGULATION IN 

5022
03:43:21,515 --> 03:43:21,882
SCHOOL.

5023
03:43:21,882 --> 03:43:24,218
I'LL SAY A STRONG RUNNER UP TO 

5024
03:43:24,218 --> 03:43:26,087
THESE SETTINGS WERE GROCERY 

5025
03:43:26,087 --> 03:43:27,588
STORES.

5026
03:43:27,588 --> 03:43:32,526
GROCERY STORES AND TRAVELLING.

5027
03:43:32,526 --> 03:43:35,262
WE LOOKED AT WHAT CONTRIBUTED TO

5028
03:43:35,262 --> 03:43:35,863
EMOTION DYSREGULATION IN THE 

5029
03:43:35,863 --> 03:43:40,201
STORIES?

5030
03:43:40,201 --> 03:43:42,970
AND WE FOUND THAT INACCESSIBLE 

5031
03:43:42,970 --> 03:43:44,438
ENVIRONMENTS LIVING IN A 

5032
03:43:44,438 --> 03:43:45,039
NEUROTYPICAL WORLD WAS ONE OF 

5033
03:43:45,039 --> 03:43:49,043
THE STRONGEST PREDICTORS TO 

5034
03:43:49,043 --> 03:43:50,077
EMOTION DYSREGULATION IN THE 

5035
03:43:50,077 --> 03:43:52,113
STORIES.

5036
03:43:52,113 --> 03:43:54,949
AND A LOT OF THAT WAS SENSORY 

5037
03:43:54,949 --> 03:43:56,851
AND UNPREDICTABILITY WHICH 

5038
03:43:56,851 --> 03:43:59,286
CONTRIBUTED TO IT.

5039
03:43:59,286 --> 03:44:01,956
DISCRIMINATION WAS A PROMINENT 

5040
03:44:01,956 --> 03:44:04,925
THEME WITH CONTRIBUTING TO 

5041
03:44:04,925 --> 03:44:08,095
EMOTION DYSREGULATION AND NOT 

5042
03:44:08,095 --> 03:44:12,033
FEELING SAFE AND CHRONICALLY 

5043
03:44:12,033 --> 03:44:15,302
FEELING INVALIDATE AND MASKING 

5044
03:44:15,302 --> 03:44:19,040
TRAITS OF SYMPTOMS WAS A STRONG 

5045
03:44:19,040 --> 03:44:21,342
CONTRIBUTOR TO DYSREGULATION AND

5046
03:44:21,342 --> 03:44:23,577
HAVING DIFFICULTY KNOWING 

5047
03:44:23,577 --> 03:44:25,312
EMOTIONAL DYSREGULATION WAS 

5048
03:44:25,312 --> 03:44:27,648
COMING AND NOT REALIZING UNTIL I

5049
03:44:27,648 --> 03:44:30,684
WAS TOO LATE BECAUSE THEY WERE 

5050
03:44:30,684 --> 03:44:31,118
HIDING IT.

5051
03:44:31,118 --> 03:44:34,321
AND SOCIAL MISUNDERSTANDING WITH

5052
03:44:34,321 --> 03:44:34,955
NEUROTYPICAL PEERS LEADING TO 

5053
03:44:34,955 --> 03:44:36,791
SOCIAL REJEKSZ.

5054
03:44:36,791 --> 03:44:39,160
-- REJECTION.

5055
03:44:39,160 --> 03:44:43,164
THIS WAS ALSO THE STANDARD 

5056
03:44:43,164 --> 03:44:43,964
PROMINENT IN THE INTERVIEWS 

5057
03:44:43,964 --> 03:44:45,666
THOUGH WHAT'S HIGHLIGHTED ON THE

5058
03:44:45,666 --> 03:44:48,135
SLIDES WAS MORE COMMONLY 

5059
03:44:48,135 --> 03:44:49,070
ENDORSED THE SENSORY NEEDS AND 

5060
03:44:49,070 --> 03:44:59,613
AWARENESS AND SOCIAL REDUCTION.

5061
03:45:05,853 --> 03:45:06,420
SOME QUOTES.

5062
03:45:06,420 --> 03:45:10,991
I AM FORCED TO KEEP IT TONED 

5063
03:45:10,991 --> 03:45:12,560
DOWN BECAUSE OKAY I'M AT WORK 

5064
03:45:12,560 --> 03:45:15,396
CAN'T BE SEEN FORCING IT DOWN 

5065
03:45:15,396 --> 03:45:16,130
ACTUALLY IS WORSE.

5066
03:45:16,130 --> 03:45:18,766
PEOPLE DON'T UNDERSTAND THINGS 

5067
03:45:18,766 --> 03:45:19,567
FROM YOUR PERSPECTIVE.

5068
03:45:19,567 --> 03:45:20,768
YOU'RE EXPECTED TO UNDERSTAND 

5069
03:45:20,768 --> 03:45:21,569
THINGS FROM THEIR PERSPECTIVE 

5070
03:45:21,569 --> 03:45:23,571
BUT NO EFFORTS ON THE OTHER 

5071
03:45:23,571 --> 03:45:27,174
PERSON'S PART.

5072
03:45:27,174 --> 03:45:29,410
LASTLY A QUOTE FROM A 

5073
03:45:29,410 --> 03:45:31,412
17-YEAR-OLD TEENAGER TALKING 

5074
03:45:31,412 --> 03:45:32,847
ABOUT A SOCIAL MISUNDERSTANDING 

5075
03:45:32,847 --> 03:45:34,181
AT SCHOOL THAT IMPACTS THE 

5076
03:45:34,181 --> 03:45:38,085
ENTIRE REST OF THEIR YEAR.

5077
03:45:38,085 --> 03:45:40,654
THERE WAS A BUG ON THE 

5078
03:45:40,654 --> 03:45:41,956
PLAYGROUND AND EVERYONE WAS 

5079
03:45:41,956 --> 03:45:43,557
GATHERED EIGHT AND HAD NO CLUE 

5080
03:45:43,557 --> 03:45:45,926
AND I RAN OVER AND STEPPED ON 

5081
03:45:45,926 --> 03:45:47,328
THE BUG AND FOR THE REST OF THE 

5082
03:45:47,328 --> 03:45:51,398
YEAR I STAYED INSIDE.

5083
03:45:51,398 --> 03:45:53,734
THE CONSEQUENCES OF 

5084
03:45:53,734 --> 03:45:55,569
DYSREGULATION AND STORIES FROM 

5085
03:45:55,569 --> 03:45:57,505
PARTICIPANTS WERE QUITE SEVERE.

5086
03:45:57,505 --> 03:45:59,573
THERE ARE FREQUENT UNJUST 

5087
03:45:59,573 --> 03:46:01,442
RESPONSES TO EMOTION 

5088
03:46:01,442 --> 03:46:02,276
DYSREGULATION IN HEALTH CARE 

5089
03:46:02,276 --> 03:46:03,577
SETTINGS AND SCHOOL SETTINGS AND

5090
03:46:03,577 --> 03:46:12,453
COMMUNITY SETTINGS.

5091
03:46:12,453 --> 03:46:13,420
UNV

5092
03:46:13,420 --> 03:46:14,922
IN VOLUNTARY SEDATION AND LOSS 

5093
03:46:14,922 --> 03:46:17,391
OF JOBS AND FRIENDSHIPS AND THE 

5094
03:46:17,391 --> 03:46:25,499
NEED FOR SAFE PLACES TO GO WHEN 

5095
03:46:25,499 --> 03:46:26,333
EXPERIENCING DYSREGULATION WAS 

5096
03:46:26,333 --> 03:46:27,334
PROMINENT.

5097
03:46:27,334 --> 03:46:29,970
HERE'S A QUOTE FROM A 

5098
03:46:29,970 --> 03:46:32,373
42-YEAR-OLD AUTISTIC FEMALE.

5099
03:46:32,373 --> 03:46:35,943
THEY'RE THREATENING TO SUSPEND 

5100
03:46:35,943 --> 03:46:38,145
ME IT MAKES NO SENSE BECAUSE I'M

5101
03:46:38,145 --> 03:46:40,314
NOT WELL ENOUGH.

5102
03:46:40,314 --> 03:46:50,658
SHE HAD A MELTDOWN.

5103
03:46:50,991 --> 03:46:55,729
ACROSS HEALTH CARE PROVIDERS WE 

5104
03:46:55,729 --> 03:46:56,997
ASKED THEM WHAT APPROACH THEY'RE

5105
03:46:56,997 --> 03:46:59,300
USING AND THAT WAS A WIDE 

5106
03:46:59,300 --> 03:46:59,567
APPROACH.

5107
03:46:59,567 --> 03:47:01,602
THEY DESCRIBED VALIDATION, 

5108
03:47:01,602 --> 03:47:04,104
WORKING ON RELATIONSHIPS, SOCIAL

5109
03:47:04,104 --> 03:47:04,905
SKILLS, MINDFULNESS AND SENSORY 

5110
03:47:04,905 --> 03:47:08,542
TOOLS.

5111
03:47:08,542 --> 03:47:13,380
WHY I THINK IT CAME UP SO OFTEN 

5112
03:47:13,380 --> 03:47:14,949
IS WHEN I SEE FAMILIES I SEE 

5113
03:47:14,949 --> 03:47:18,519
THEM FOR YEARS AND YEARS AND THE

5114
03:47:18,519 --> 03:47:19,019
NEED FOR LONG-TERM CARE.

5115
03:47:19,019 --> 03:47:20,287
AND THEN 25% MENTIONED 

5116
03:47:20,287 --> 03:47:30,664
BEHAVIORAL APPROACHES.

5117
03:47:39,506 --> 03:47:43,577
THERE WERE INTERVENTIONS AND DO 

5118
03:47:43,577 --> 03:47:47,581
THEY HONOR AUTISM IF SOMEONE IS 

5119
03:47:47,581 --> 03:47:48,616
BE DISCRIMINATED AGAINST WHY DO 

5120
03:47:48,616 --> 03:47:49,717
WE WANT TO FEEL WE'RE CHANGING 

5121
03:47:49,717 --> 03:47:51,385
THE INDIVIDUAL?

5122
03:47:51,385 --> 03:47:52,786
THEY'RE NOT GENERALIZING TO REAL

5123
03:47:52,786 --> 03:47:52,987
LIFE.

5124
03:47:52,987 --> 03:47:54,622
WHAT CAME UP FOR THAT WAS 

5125
03:47:54,622 --> 03:47:56,757
PROGRESS MADE IN A THERAPY 

5126
03:47:56,757 --> 03:47:57,891
SESSION WASN'T WORKING WHEN THEY

5127
03:47:57,891 --> 03:47:59,593
GOT HOME OR WHEN THEY GOT TO 

5128
03:47:59,593 --> 03:48:03,564
SCHOOL.

5129
03:48:03,564 --> 03:48:11,572
AND THEY WEREN'T DESIGNED FOR 

5130
03:48:11,572 --> 03:48:15,809
COMMUNICATION AND I FEEL LIKE WE

5131
03:48:15,809 --> 03:48:19,313
HEARD THIS SENTIMENT A FEW TIMES

5132
03:48:19,313 --> 03:48:21,115
FROM THE PARENT OF AN AUTISTIC 

5133
03:48:21,115 --> 03:48:22,316
ADULT AND ASKED ME WHAT'S GOOD 

5134
03:48:22,316 --> 03:48:24,118
AND WHAT'S POSITIVE AND WHAT 

5135
03:48:24,118 --> 03:48:24,318
WORKS?

5136
03:48:24,318 --> 03:48:26,787
LIKE I SAID, I CAN TELL YOU WHAT

5137
03:48:26,787 --> 03:48:27,221
DOESN'T.

5138
03:48:27,221 --> 03:48:29,023
RELINQUISH YOUR CHILD TO THE 

5139
03:48:29,023 --> 03:48:31,058
COUNTRY AND THEY'LL FIND THEM 

5140
03:48:31,058 --> 03:48:32,626
SOMEWHERE THAT'S A GOOD PROGRAM.

5141
03:48:32,626 --> 03:48:34,528
THEY TELL ME THEY ARE AND I SEE 

5142
03:48:34,528 --> 03:48:36,096
THEM AND HAVE SEEN MONEY AND 

5143
03:48:36,096 --> 03:48:39,400
LOTS OF MONEY AND MONEY FOR 

5144
03:48:39,400 --> 03:48:41,402
AUTISM SERVICES AND LEVERS.

5145
03:48:41,402 --> 03:48:44,071
I SEE ALL THESE GREAT PLACES 

5146
03:48:44,071 --> 03:48:46,707
HAVING ALL KINDS OF FUND RAISERS

5147
03:48:46,707 --> 03:48:57,117
AND MY SON HAS NOTHING.

5148
03:48:58,118 --> 03:48:59,987
THIS IS A THEME WHETHER 

5149
03:48:59,987 --> 03:49:01,355
INTERVENTIONS ARE APPROPRIATE 

5150
03:49:01,355 --> 03:49:04,692
AND A COMMENT ON POSITIVE 

5151
03:49:04,692 --> 03:49:05,626
BEHAVIORAL THERAPY.

5152
03:49:05,626 --> 03:49:09,863
MY FEELINGS ARE VALID AND MANY 

5153
03:49:09,863 --> 03:49:11,465
SICH WEIGHINGS CANNOT BE REDUCED

5154
03:49:11,465 --> 03:49:14,702
TO FAULTY THINKING PATTERNS AND 

5155
03:49:14,702 --> 03:49:16,937
A PARENT FROM AN AUTISTIC 

5156
03:49:16,937 --> 03:49:18,972
BEHAVIOR HE THINKS HE'S SEEING 

5157
03:49:18,972 --> 03:49:20,074
PROVIDERS BECAUSE SOMETHING'S 

5158
03:49:20,074 --> 03:49:22,609
WRONG WITH HIM AND A COMMUNITY 

5159
03:49:22,609 --> 03:49:24,545
THERAPIST MENTIONING I WISH 

5160
03:49:24,545 --> 03:49:26,013
THERE WERE MORE PROGRAMS THAT 

5161
03:49:26,013 --> 03:49:27,781
WERE ABOUT HELPING YOU REGULATE 

5162
03:49:27,781 --> 03:49:30,017
OR SOCIAL SKILLS AREN'T GOOD, WE

5163
03:49:30,017 --> 03:49:31,418
NEED TO GET YOU SOCIAL SKILLS.

5164
03:49:31,418 --> 03:49:35,589
I FEEL LIKE A LOT OF THOSE ARE 

5165
03:49:35,589 --> 03:49:41,028
DEFICIT BASED.

5166
03:49:41,028 --> 03:49:43,230
THE DIFFICULTY TRANSLATING.

5167
03:49:43,230 --> 03:49:44,898
COMMUNITY HEALTH PROVIDERS SHARE

5168
03:49:44,898 --> 03:49:47,134
THEIR MAIN TOOL TO HELP 

5169
03:49:47,134 --> 03:49:48,369
GENERALIZING PROGRESS IS 

5170
03:49:48,369 --> 03:49:50,070
INVOLVING PARENTS AND CAREGIVERS

5171
03:49:50,070 --> 03:49:54,007
IN TREATMENTS.

5172
03:49:54,007 --> 03:49:55,476
WE ASKED GROUPS HOW DO YOU FEEL 

5173
03:49:55,476 --> 03:49:57,378
ABOUT INVOLVING CAREGIVERS IN 

5174
03:49:57,378 --> 03:50:01,982
MENTAL HEALTH TREATMENTS?

5175
03:50:01,982 --> 03:50:06,353
WE FOUND WIDE DISCREPANCY AND 

5176
03:50:06,353 --> 03:50:08,422
THERE'S THE SUPPORT OF 

5177
03:50:08,422 --> 03:50:11,225
CAREGIVERS TO GENERALIZE 

5178
03:50:11,225 --> 03:50:11,492
PROGRESS.

5179
03:50:11,492 --> 03:50:13,427
TO VARYING DEGREES HOW MUCH OF A

5180
03:50:13,427 --> 03:50:14,561
SESSION THEY'D BE INVOLVED.

5181
03:50:14,561 --> 03:50:17,264
ONLY ONE TEENAGER SAID THEY'D 

5182
03:50:17,264 --> 03:50:17,865
PREFER TO HAVE A PARENT OR 

5183
03:50:17,865 --> 03:50:23,404
CAREGIVER INVOLVED.

5184
03:50:23,404 --> 03:50:25,639
40% OF ADULTS WORE OPEN TO IT 

5185
03:50:25,639 --> 03:50:26,273
AND THE REST WERE NOT OPEN TO 

5186
03:50:26,273 --> 03:50:32,913
IT.

5187
03:50:32,913 --> 03:50:34,348
AND PARENTS AND CAREGIVERS WERE 

5188
03:50:34,348 --> 03:50:36,750
SPLIT DOWN THE MIDDLE.

5189
03:50:36,750 --> 03:50:38,419
THEY MENTIONED MORE NUANCED 

5190
03:50:38,419 --> 03:50:42,623
BEING INVOLVED IN PARTS OF THE 

5191
03:50:42,623 --> 03:50:43,590
SESSION AND ALSO GENERALIZING AT

5192
03:50:43,590 --> 03:50:53,700
HOME.

5193
03:51:08,148 --> 03:51:11,518
INTERVENTIONS ARE FOUR TO FIVE 

5194
03:51:11,518 --> 03:51:14,087
SESSIONS LONG AND PEOPLE ARE 

5195
03:51:14,087 --> 03:51:24,364
LOOKING FOR YEARS.

5196
03:51:24,364 --> 03:51:27,668
YOU CAN GO TO FAIRS AND THEY'LL 

5197
03:51:27,668 --> 03:51:29,203
SAY WE WELCOME ANYONE ON THE 

5198
03:51:29,203 --> 03:51:32,906
SPECTRUM AND YOU SAY THOSE WITH 

5199
03:51:32,906 --> 03:51:34,475
BEHAVIORS AND THEY SAY NO.

5200
03:51:34,475 --> 03:51:37,211
THE CURRENT MENTAL HEALTH CARE 

5201
03:51:37,211 --> 03:51:43,150
SYSTEM IS A POOR FIT FOR 

5202
03:51:43,150 --> 03:51:46,353
AUTISTIC PEOPLE AND THERE'S 

5203
03:51:46,353 --> 03:51:56,463
NEEDS 

5204
03:52:10,878 --> 03:52:21,321
AND INTEGRATING SENSORY INTO 

5205
03:52:26,260 --> 03:52:29,162
MENTAL HEALTH INTERVENTIONS AND 

5206
03:52:29,162 --> 03:52:29,363
CARE.

5207
03:52:29,363 --> 03:52:30,697
HOW CAN WE DESIGN INTERVENTIONS 

5208
03:52:30,697 --> 03:52:33,500
WHERE WE'RE THINKING ABOUT THE 

5209
03:52:33,500 --> 03:52:34,835
COMMUNITY FIRST AND DEVELOPING 

5210
03:52:34,835 --> 03:52:37,037
IT WITH COMMUNITY MENTAL HEALTH 

5211
03:52:37,037 --> 03:52:40,440
PROVIDERS SO THEY TRANSLATE 

5212
03:52:40,440 --> 03:52:41,441
BETTER TO WHAT'S GOING ON AND 

5213
03:52:41,441 --> 03:52:44,478
HOW CAN WE THINK OF OTHER TOOLS 

5214
03:52:44,478 --> 03:52:45,245
FOR GENERALIZE PROGRESS THAN 

5215
03:52:45,245 --> 03:52:50,083
JUST INVOLVING PARENTS WHO ARE 

5216
03:52:50,083 --> 03:53:00,360
NEURODIVERGENT.

5217
03:53:12,172 --> 03:53:14,308
WE LACK MENTORS AND SUPPORT.

5218
03:53:14,308 --> 03:53:16,376
>> THANK YOU TO THE
PANELIST.

5219
03:53:16,376 --> 03:53:22,115
I'LL ABBREVIATE THE COMMENT 

5220
03:53:22,115 --> 03:53:25,586
PORTION AND PLEASE KEEP IT BRIEF

5221
03:53:25,586 --> 03:53:27,321
OUT OF RESPECT FOR OTHERS.

5222
03:53:27,321 --> 03:53:35,762
I KNOW WE'RE RUNNING BEHIND.

5223
03:53:35,762 --> 03:53:36,163
IVA

5224
03:53:36,163 --> 03:53:38,298
IVANO VO GO FIRST.

5225
03:53:38,298 --> 03:53:43,570
>> IS THERE RESEARCH ON
LACK OF 

5226
03:53:43,570 --> 03:53:46,506
AUTONOMY CAN CONTRIBUTE TO 

5227
03:53:46,506 --> 03:53:48,542
CONTRIBUTING BEHAVIORS AND ALLOW

5228
03:53:48,542 --> 03:53:50,677
PEOPLE WHO NEED HIGH SUPPORT 

5229
03:53:50,677 --> 03:53:55,248
MORE AUTONOMY IN THEIR LIVES AND

5230
03:53:55,248 --> 03:53:58,852
DOES THAT HELP RELIEVE THAT 

5231
03:53:58,852 --> 03:54:00,120
CHALLENGE.

5232
03:54:00,120 --> 03:54:00,387
THANK YOU.

5233
03:54:00,387 --> 03:54:03,724
>> THAT'S AN EXCELLENT
QUESTION 

5234
03:54:03,724 --> 03:54:05,092
AND POWERFUL WAY TO LOOK AT 

5235
03:54:05,092 --> 03:54:05,325
THINGS.

5236
03:54:05,325 --> 03:54:07,761
I DON'T HAVE THE ANSWER TO THAT.

5237
03:54:07,761 --> 03:54:09,863
IN OTHER WORDS, I'M NOT FAR 

5238
03:54:09,863 --> 03:54:11,798
FAMILIAR WHETHER THERE IS OR IS 

5239
03:54:11,798 --> 03:54:13,767
NOT RESEARCH FROM THAT 

5240
03:54:13,767 --> 03:54:14,401
PERSPECTIVE PARTICULARLY LOOKING

5241
03:54:14,401 --> 03:54:18,205
AT AUTONOMY AND HOW THAT 

5242
03:54:18,205 --> 03:54:21,775
INTERPLAYS WITH THESE BEHAVIORS 

5243
03:54:21,775 --> 03:54:25,946
AND WHETHER THESE IMMIGRATION 

5244
03:54:25,946 --> 03:54:26,913
AND SELF-INJURY AND WHETHER IT'S

5245
03:54:26,913 --> 03:54:30,550
A PATH TO REDUCE THEM OR 

5246
03:54:30,550 --> 03:54:31,451
PREDICTOR OF THEM OCCURRING.

5247
03:54:31,451 --> 03:54:41,928
IT'S A REALLY GOOD QUESTION.

5248
03:54:43,296 --> 03:54:43,463
>> WE HAVE 

5249
03:54:47,634 --> 03:54:47,634
 

5250
03:54:49,903 --> 03:54:56,877
 DENA AND A COUPLE OTHERS AND I 

5251
03:54:56,877 --> 03:55:00,714
WON'T HAVE TIME FOR OTHERS THIS 

5252
03:55:00,714 --> 03:55:03,583
AFTERNOON AND PLEASE BE BRIEF AS

5253
03:55:03,583 --> 03:55:04,484
IVANOVA DEMONSTRATE.

5254
03:55:04,484 --> 03:55:07,587
>> YOU CAN KEEP UP I'LL
ASK MY 

5255
03:55:07,587 --> 03:55:12,025
QUESTIONS IN A ROW.

5256
03:55:12,025 --> 03:55:14,094
>> OUT OF FOR OTHERS JUST
ASK 

5257
03:55:14,094 --> 03:55:14,594
ONE QUESTION.

5258
03:55:14,594 --> 03:55:15,595
>> OH, GOD, YOU'LL MAKE ME
DO 

5259
03:55:15,595 --> 03:55:19,433
THAT?

5260
03:55:19,433 --> 03:55:21,935
OKAY JUST AN OBSERVATION.

5261
03:55:21,935 --> 03:55:25,739
I SAW MANY OPPORTUNITIES THERE 

5262
03:55:25,739 --> 03:55:30,544
TO DELINEATE BY GENDER OR GEND 

5263
03:55:30,544 --> 03:55:32,546
STATUS AND MANY SUBJECT MATTERS 

5264
03:55:32,546 --> 03:55:33,780
CAN CONTINUE TO DELINEATE THAT 

5265
03:55:33,780 --> 03:55:35,182
INFORMATION WHEN IT'S AVAILABLE 

5266
03:55:35,182 --> 03:55:36,583
I THINK WOULD HELP INFORM OUR 

5267
03:55:36,583 --> 03:55:38,251
RESEARCH TREMENDOUSLY GOING 

5268
03:55:38,251 --> 03:55:40,954
FORWARD AND FOR RUSSELL LAYMAN 

5269
03:55:40,954 --> 03:55:42,856
IF YOU WANT TO WATCH A LIVED 

5270
03:55:42,856 --> 03:55:44,591
EXPERIENCE REPORTING WITH THE 

5271
03:55:44,591 --> 03:55:49,763
RQS AND HIS YOUTUBE VIDEOS 

5272
03:55:49,763 --> 03:55:52,032
DESCRIBE LOSING IN THE MENTAL 

5273
03:55:52,032 --> 03:55:54,101
HEALTH ENVIRONMENT AND WATCHING 

5274
03:55:54,101 --> 03:55:55,669
HIM BE DISREGARDED.

5275
03:55:55,669 --> 03:55:56,470
IT'S HEART WRENCHING.

5276
03:55:56,470 --> 03:55:58,238
I ENCOURAGE TO FIND IT.

5277
03:55:58,238 --> 03:55:59,506
>> THANK YOU.

5278
03:55:59,506 --> 03:56:01,708
I APPRECIATE YOUR FORBEARANCE 

5279
03:56:01,708 --> 03:56:04,511
WITH MY STRICTNESS HERE.

5280
03:56:04,511 --> 03:56:05,879
>> HELEN.

5281
03:56:05,879 --> 03:56:06,780
>> THANK YOU SO MUCH.

5282
03:56:06,780 --> 03:56:11,451
THIS HAS BEEN REALLY FANTASTIC.

5283
03:56:11,451 --> 03:56:13,153
I WANT TWO INTERRELATED 

5284
03:56:13,153 --> 03:56:14,154
QUESTIONS.

5285
03:56:14,154 --> 03:56:19,559
ONE IS HOW WE DEVELOPED ANY NEW 

5286
03:56:19,559 --> 03:56:21,228
EFFECTIVE TREATMENTS FOR 

5287
03:56:21,228 --> 03:56:23,797
REGRESSION AND PARTICULARLY FOR 

5288
03:56:23,797 --> 03:56:27,934
THOSE WITH AUTISM AND SECOND, I 

5289
03:56:27,934 --> 03:56:28,869
THOUGHT THESE WERE CONDITIONS 

5290
03:56:28,869 --> 03:56:33,106
THAT WOULD BE LOW HANGING FRUIT 

5291
03:56:33,106 --> 03:56:39,045
FOR PARTICULARLY ANIMAL MODELS 

5292
03:56:39,045 --> 03:56:40,614
FOR AUTISM AND WE KNOW SO MUCH 

5293
03:56:40,614 --> 03:56:41,848
MONEY IS GOING TO BIOLOGICAL 

5294
03:56:41,848 --> 03:56:43,984
RESEARCH BUT WHAT PROPORTION IS 

5295
03:56:43,984 --> 03:56:47,587
ACTUALLY THESE DAYS FOCUSSED ON 

5296
03:56:47,587 --> 03:56:49,389
THESE CRITICAL CONDITIONS AND 

5297
03:56:49,389 --> 03:56:51,558
THESE ARE INTERRELATED BECAUSE 

5298
03:56:51,558 --> 03:56:53,493
WITHOUT ANIMAL MODELS WE'RE NOT 

5299
03:56:53,493 --> 03:57:01,368
GOING GET TO NEW EFFECTIVE 

5300
03:57:01,368 --> 03:57:02,402
BIOLOGICAL TREATMENTS THAT ARE 

5301
03:57:02,402 --> 03:57:05,272
WHAT WE DESPERATELY NEED.

5302
03:57:05,272 --> 03:57:05,772
>> THANK YOU.

5303
03:57:05,772 --> 03:57:08,942
DO ANY PANELISTS CARE TO RESPOND

5304
03:57:08,942 --> 03:57:11,611
TO THE QUESTIONS?

5305
03:57:11,611 --> 03:57:13,280
>> I CAN TAKE THE FIRST
ONE.

5306
03:57:13,280 --> 03:57:19,586
 A LITTLE BIT.

5307
03:57:19,586 --> 03:57:21,221
SO SIMPLISTICALLY I WOULD SAY NO

5308
03:57:21,221 --> 03:57:24,257
WE HAVE NOT SEEN IN THE LAST 20 

5309
03:57:24,257 --> 03:57:27,727
YEARS OR SO SINCE THE TRIALS FOR

5310
03:57:27,727 --> 03:57:33,533
ATYPICAL ANTIPSYCHOTICS IN 2002 

5311
03:57:33,533 --> 03:57:38,104
AND 2003 WERE PUBLISHED FOR 

5312
03:57:38,104 --> 03:57:39,306
AGGRESSION AND SELF-INJURY, I 

5313
03:57:39,306 --> 03:57:40,340
DON'T THINK WE'VE SEEN 

5314
03:57:40,340 --> 03:57:41,942
SIGNIFICANT ADVANCES.

5315
03:57:41,942 --> 03:57:44,444
WE'VE SEEN MARGINAL ONES.

5316
03:57:44,444 --> 03:57:47,747
WE HAVE PROMISING THINGS SUCH AS

5317
03:57:47,747 --> 03:57:49,082
EMOTION REGULATION AND 

5318
03:57:49,082 --> 03:57:51,351
INTERVENTION, THE EASE 

5319
03:57:51,351 --> 03:57:53,920
INTERVENTION PARTICULARLY EASE 

5320
03:57:53,920 --> 03:57:56,423
I.D. FOR THOSE WHO ARE HIGHER 

5321
03:57:56,423 --> 03:57:57,724
SUPPORT NEEDS.

5322
03:57:57,724 --> 03:57:59,192
WE'RE LOOKING TO INTEGRATE THAT 

5323
03:57:59,192 --> 03:58:04,965
INTO OUR IN-PATIENT UNIT BUT IN 

5324
03:58:04,965 --> 03:58:15,508
TERMS OF SIGNIFICANT STEPS IT'S 

5325
03:58:16,910 --> 03:58:19,279
NOT A RICH LANDSCAPE AND DON'T 

5326
03:58:19,279 --> 03:58:20,513
MEAN TO SOUND NEGATIVE BUT 

5327
03:58:20,513 --> 03:58:22,916
THAT'S THE CASE.

5328
03:58:22,916 --> 03:58:25,185
WHAT I'M DOING TODAY WITH MY 

5329
03:58:25,185 --> 03:58:27,420
COLLEAGUES IT'S BETTER BUT NOT 

5330
03:58:27,420 --> 03:58:28,255
MUCH DIFFERENT THAN 15 YEARS AGO

5331
03:58:28,255 --> 03:58:31,791
WHEN I STARTED DOING THIS.

5332
03:58:31,791 --> 03:58:34,060
>> I DONT HAVE MUCH TO ADD
OTHER

5333
03:58:34,060 --> 03:58:36,696
THAN I AGREE FULLY AND DID TRY 

5334
03:58:36,696 --> 03:58:38,431
TO EMPHASIZE THAT A LITTLE IN 

5335
03:58:38,431 --> 03:58:39,299
THE INTRO.

5336
03:58:39,299 --> 03:58:40,467
I DON'T THINK WE MADE MUCH 

5337
03:58:40,467 --> 03:58:42,669
PROGRESS IN THE AREA AND NEED TO

5338
03:58:42,669 --> 03:58:46,506
DO A BETTER JOB THINKING 

5339
03:58:46,506 --> 03:58:50,343
HOLISTICALLY USING NEW 

5340
03:58:50,343 --> 03:58:56,483
BIOLOGICAL RESEARCH NOT JUST 

5341
03:58:56,483 --> 03:58:56,816
AN

5342
03:58:56,816 --> 03:58:57,150
AN

5343
03:58:57,150 --> 03:58:57,517
ANTI-PSYCHOTICS.

5344
03:58:57,517 --> 03:58:58,785
>> NIMHD AFTER SEVERAL
YEARS AGO

5345
03:58:58,785 --> 03:59:01,888
WE HAD A SESSION DEVOTED 

5346
03:59:01,888 --> 03:59:05,659
SPECIFICALLY TO AGGRESSION AND 

5347
03:59:05,659 --> 03:59:08,862
VIOLENCE AND HAVE A LOT OF 

5348
03:59:08,862 --> 03:59:10,297
TESTIMONY FROM PARENTS AND 

5349
03:59:10,297 --> 03:59:11,131
INDIVIDUALS LIVING WITH IT PUT 

5350
03:59:11,131 --> 03:59:16,002
OUT AN UPDATED NOTICE ON 

5351
03:59:16,002 --> 03:59:16,903
AGGRESSION RESEARCH WITH THIS 

5352
03:59:16,903 --> 03:59:18,238
PARTICULARLY IN MIND AND THE 

5353
03:59:18,238 --> 03:59:19,372
IDEA IT WOULD BE COMPELLING TO 

5354
03:59:19,372 --> 03:59:22,175
TRY TO STUDY IT FROM THE 

5355
03:59:22,175 --> 03:59:22,709
PRE-CLINICAL STANDPOINT.

5356
03:59:22,709 --> 03:59:24,077
NOTHING NEW COMING OUT OF THAT 

5357
03:59:24,077 --> 03:59:25,045
YET BUT WE HOPE TO SEE SOMETHING

5358
03:59:25,045 --> 03:59:28,581
IN THE FUTURE.

5359
03:59:28,581 --> 03:59:33,153
WE HAVE YETTA AND HARI AND 

5360
03:59:33,153 --> 03:59:34,754
SORRY, SCOTT WE WON'T BE ABLE TO

5361
03:59:34,754 --> 03:59:35,689
TAKE YOUR QUESTION SO MAYBE HOLD

5362
03:59:35,689 --> 03:59:39,125
IT TO THE END OF THE DAY.

5363
03:59:39,125 --> 03:59:39,426
YETTA.

5364
03:59:39,426 --> 03:59:41,428
>> THANK YOU FOR PRESENT.

5365
03:59:41,428 --> 03:59:43,930
QUICKLY, YOU DON'T HAVE TO GIVE 

5366
03:59:43,930 --> 03:59:47,567
THE INFORMATION NOW BUT CURIOUS 

5367
03:59:47,567 --> 03:59:49,302
TO KNOW WHO ALL PARTICIPATED IN 

5368
03:59:49,302 --> 03:59:50,337
YOUR DIFFERENT STUDIES BIP 

5369
03:59:50,337 --> 03:59:52,238
DIDN'T SEE THAT CLEARLY LAID OUT

5370
03:59:52,238 --> 03:59:53,106
ACROSS THE PRESENTATION.

5371
03:59:53,106 --> 03:59:54,474
AND THEN AS YOU TALK ABOUT 

5372
03:59:54,474 --> 03:59:55,875
TAKING THE PLANS TO THE 

5373
03:59:55,875 --> 03:59:57,677
COMMUNITY, HOW DO YOU THEN PLAN 

5374
03:59:57,677 --> 04:00:00,080
TO ENGAGE A DIVERSE POPULATION 

5375
04:00:00,080 --> 04:00:10,357
IN THAT NETWORK?

5376
04:00:10,690 --> 04:00:13,693
>> WE HAVE METHODS AND
DETAILS 

5377
04:00:13,693 --> 04:00:15,562
AND HAPPY TO SHARE MORE ABOUT 

5378
04:00:15,562 --> 04:00:16,963
OUR SAMPLES.

5379
04:00:16,963 --> 04:00:18,498
WE'RE TRYING HARD TO GET DIVERSE

5380
04:00:18,498 --> 04:00:21,167
SAMPLES AND I THINK IT'S AN AREA

5381
04:00:21,167 --> 04:00:24,571
OF GROWTH WE'RE TRYING TO BUILD 

5382
04:00:24,571 --> 04:00:26,973
COMMUNITY PARTNERSHIPS AND 

5383
04:00:26,973 --> 04:00:28,074
TARGET MORE DIVERSE SAMPLE AND 

5384
04:00:28,074 --> 04:00:32,112
MORE RECRUITING IN AREAS THAT 

5385
04:00:32,112 --> 04:00:37,917
WILL FOSTER DIVERSITY.

5386
04:00:37,917 --> 04:00:40,487
>> I THINK SO WE HAVE
AUTISM 

5387
04:00:40,487 --> 04:00:42,622
CENTER OF EXCELLENCE FOCUSSED ON

5388
04:00:42,622 --> 04:00:43,590
DISSEMINATION AND IMPLEMENTING 

5389
04:00:43,590 --> 04:00:46,026
IN THE COMMUNITY AND OUR 

5390
04:00:46,026 --> 04:00:49,362
APPROACH IS TRULY FORMING 

5391
04:00:49,362 --> 04:00:50,964
RELATIONSHIPS WITH COMMUNITIES 

5392
04:00:50,964 --> 04:00:52,298
THAT MAYBE NECESSARILY DON'T 

5393
04:00:52,298 --> 04:00:53,967
TRUST RESEARCH TO START.

5394
04:00:53,967 --> 04:00:56,236
SO WE'RE PARTNERING WITH LEADERS

5395
04:00:56,236 --> 04:01:02,075
IN THE COMMUNITY IN AUTISM AND 

5396
04:01:02,075 --> 04:01:12,585
NOT IN AUTISM TO REACH THOSE 

5397
04:01:12,786 --> 04:01:14,087
MARGINALIZED GROUPS BUT IT'S A 

5398
04:01:14,087 --> 04:01:16,589
HUGE FOCUS.

5399
04:01:16,589 --> 04:01:17,190
>> THANK YOU.

5400
04:01:17,190 --> 04:01:19,559
I BELIEVE WE HAVE A QUESTION 

5401
04:01:19,559 --> 04:01:22,362
FROM HARI.

5402
04:01:22,362 --> 04:01:26,299
>> WE HAVE TWO FROM HARI.

5403
04:01:26,299 --> 04:01:31,905
THE FIRST IS FROM DR. MAZEFSKY'S

5404
04:01:31,905 --> 04:01:34,741
TALK THE CDC STATES NOT ONLY 

5405
04:01:34,741 --> 04:01:37,877
SERVING HIGH-FUNCTIONING 

5406
04:01:37,877 --> 04:01:39,512
AUTISTICS BUT THE REST OF THE 

5407
04:01:39,512 --> 04:01:43,716
AUTISM SPECTRUM DOES NOT HAVE 

5408
04:01:43,716 --> 04:01:44,784
MENTAL HEALTH ISSUES AND DOESN'T

5409
04:01:44,784 --> 04:01:46,219
SEEM FAIR THE ONLY OPTION FOR 

5410
04:01:46,219 --> 04:01:48,588
THE REST OF THE SPECTRUM IS 

5411
04:01:48,588 --> 04:01:51,324
HEAVY USE OF PSYCHO TROPIC 

5412
04:01:51,324 --> 04:01:51,624
MEDICATION.

5413
04:01:51,624 --> 04:01:53,493
WHAT IS TROUBLING IS IS WHAT I 

5414
04:01:53,493 --> 04:01:54,727
HEARD FROM A CONVERSATION IN 

5415
04:01:54,727 --> 04:01:56,996
STANFORD A FEW YEARS BACK THAT 

5416
04:01:56,996 --> 04:01:58,598
SUCH MEDS FOR BEHAVIORS DON'T 

5417
04:01:58,598 --> 04:01:59,766
WORK IN THE SAME WAY IN 

5418
04:01:59,766 --> 04:02:03,436
AUTISTICS AS THEY DO IN THE 

5419
04:02:03,436 --> 04:02:06,539
GENERAL POPULATION.

5420
04:02:06,539 --> 04:02:08,174
YET HE SAID MEDS ARE THE FIRST 

5421
04:02:08,174 --> 04:02:10,543
COURSE OF ACTION AND COME WITH 

5422
04:02:10,543 --> 04:02:13,880
MEMORY LOSS AND INCREASING MOTOR

5423
04:02:13,880 --> 04:02:14,114
ISSUES.

5424
04:02:14,114 --> 04:02:15,315
FOR THE GENERAL POPULATION THEY 

5425
04:02:15,315 --> 04:02:17,317
HAVE CBT FOR KIDS.

5426
04:02:17,317 --> 04:02:21,020
WHY CAN'T THEY BE ADAPTED FOR 

5427
04:02:21,020 --> 04:02:21,387
AUTISTICS?

5428
04:02:21,387 --> 04:02:24,958
WE ALSO NEED BETTER 

5429
04:02:24,958 --> 04:02:25,592
PHARMACOLOGIC INTERACTIONS.

5430
04:02:25,592 --> 04:02:28,128
REGARDING DR. SIEGEL'S TALK I 

5431
04:02:28,128 --> 04:02:31,231
AGREE AGGRESSION IS THE BIGGEST 

5432
04:02:31,231 --> 04:02:34,734
BLOCK TO INCLUSION MORE THAN OCD

5433
04:02:34,734 --> 04:02:35,435
OR SELF-INJURY.

5434
04:02:35,435 --> 04:02:36,836
BOTTOM LINE BECAUSE NO FAMILY 

5435
04:02:36,836 --> 04:02:38,838
WILL WANT THEIR NEUROTYPICAL KID

5436
04:02:38,838 --> 04:02:40,640
AROUND AN AUTISTIC KID WHO HAS 

5437
04:02:40,640 --> 04:02:44,377
EVEN A SMALL CANS OF BEING 

5438
04:02:44,377 --> 04:02:46,279
AGGRESSIVE, NO TEACHER WILL WANT

5439
04:02:46,279 --> 04:02:47,847
THAT PERSON IN THEIR CLASSROOM 

5440
04:02:47,847 --> 04:02:49,716
OR SUPPORT STAFF TO WORK WITH 

5441
04:02:49,716 --> 04:02:51,251
AGGRESSIVE AUTISTICS.

5442
04:02:51,251 --> 04:02:52,819
IT BECOMES A DOWNWARD SPIRAL FOR

5443
04:02:52,819 --> 04:02:56,422
THE AUTISTIC PERSON ON MANY 

5444
04:02:56,422 --> 04:02:57,257
FRONTS.

5445
04:02:57,257 --> 04:02:58,391
AND HOSPITALIZATION CAN'T BE THE

5446
04:02:58,391 --> 04:02:59,959
ONLY SOLUTION AND BASICALLY NO 

5447
04:02:59,959 --> 04:03:01,027
ONE WANTS TO BE AROUND THAT 

5448
04:03:01,027 --> 04:03:03,029
PERSON AND EVEN THE FAMILY NOT 

5449
04:03:03,029 --> 04:03:04,764
ABLE TO MANAGE THEM AT SOME 

5450
04:03:04,764 --> 04:03:06,132
POINT DUE TO SHEER LACK OF 

5451
04:03:06,132 --> 04:03:08,067
SUPPORT AND BURNOUT SO THE 

5452
04:03:08,067 --> 04:03:10,904
AUTISTIC PERSON IS SENT AWAY.

5453
04:03:10,904 --> 04:03:14,374
ALL THIS COMPOUNDS ADVERSE 

5454
04:03:14,374 --> 04:03:16,009
CHILDHOOD EXPERIENCES AND LIFE 

5455
04:03:16,009 --> 04:03:17,911
LONG TRAUMA AND NEGLECT.

5456
04:03:17,911 --> 04:03:22,916
HE SAYS OFTEN THE ALTERNATIVE TO

5457
04:03:22,916 --> 04:03:24,217
AGGRESSION TOWARDS OTHERS 

5458
04:03:24,217 --> 04:03:29,556
BECOMES SIB TO THEMSELVES DUE TO

5459
04:03:29,556 --> 04:03:32,792
TRAUMA AND GRESSION AND NEITHER 

5460
04:03:32,792 --> 04:03:35,328
ARE GOOD OPTION.

5461
04:03:35,328 --> 04:03:36,896
>> THANK YOU.

5462
04:03:36,896 --> 04:03:38,565
WOULD ANYONE LIKE TO RESPOND?

5463
04:03:38,565 --> 04:03:39,232
THANK YOU VERY MUCH.

5464
04:03:39,232 --> 04:03:44,070
I'D LIKE TO THANK THE PANEL IT'S

5465
04:03:44,070 --> 04:03:46,005
STIMULATING TOE SEE THE RESULTS 

5466
04:03:46,005 --> 04:03:49,075
AND WOULD LOVE TO SEA THAT 

5467
04:03:49,075 --> 04:03:51,578
IMPLEMENTED.

5468
04:03:51,578 --> 04:03:53,179
WE'RE GOING TO GO TAKE A FIVE 

5469
04:03:53,179 --> 04:03:55,448
MINUTE BREAK AND COME BACK AT 

5470
04:03:55,448 --> 04:04:15,240
3:07 PRECISELY.

5471
04:04:15,240 --> 04:04:18,009
WELCOME BACK TO THE BRIEF 

5472
04:04:18,009 --> 04:04:20,578
BREAK AND WE'LL HEAR COMMUNITY 

5473
04:04:20,578 --> 04:04:21,246
PERSPECTIVES ON MENTAL HEALTH 

5474
04:04:21,246 --> 04:04:22,947
NEEDS AND AUTISM.

5475
04:04:22,947 --> 04:04:28,319
I'LL INTRODUCE OUR SPEAKERS 

5476
04:04:28,319 --> 04:04:33,091
DR. XENIA BOAR YOU FOR THE 

5477
04:04:33,091 --> 04:04:35,126
AUTISM FOR EXCELLENCE AND LISA 

5478
04:04:35,126 --> 04:04:36,728
MORGAN THE FOUNDER AND CO-CHAIR 

5479
04:04:36,728 --> 04:04:40,265
OF AUTISM AND SUICIDE PREVENTION

5480
04:04:40,265 --> 04:04:48,440
WORK GROUP, CAYLA -- KAYLA 

5481
04:04:48,440 --> 04:04:56,114
RODRIGUEZ OF AWN AND IAN 

5482
04:04:56,114 --> 04:05:01,519
NEUMAIER A STUDENT AT UNIVERSITY

5483
04:05:01,519 --> 04:05:02,253
OF PITTSBURGH.

5484
04:05:02,253 --> 04:05:11,896
DR. MORENIKE ONAIWU AND A 

5485
04:05:11,896 --> 04:05:12,964
HUMANITY SCHOLAR FOR WOMEN, 

5486
04:05:12,964 --> 04:05:16,534
GENDER AND SEXUALITY AT RICE 

5487
04:05:16,534 --> 04:05:16,835
UNIVERSITY.

5488
04:05:16,835 --> 04:05:19,571
WE ALSO HAVE JOINING US TODAY 

5489
04:05:19,571 --> 04:05:22,607
ANGIE THE MOTHER OF A YOUNG 

5490
04:05:22,607 --> 04:05:25,410
ADULT SON WHO REQUESTED TO KEEP 

5491
04:05:25,410 --> 04:05:27,645
THE LAST I'M NAME OUT FOR 

5492
04:05:27,645 --> 04:05:38,123
PRIVACY BUT WANTS TO SHARE.

5493
04:05:46,231 --> 04:05:47,866
WHETHER YOU'RE A COMMUNITY 

5494
04:05:47,866 --> 04:05:48,800
PROFESSIONAL OR IDENTIFY MORE 

5495
04:05:48,800 --> 04:05:59,277
THAN ONE OF THE CATEGORIES.

5496
04:06:03,915 --> 04:06:07,886
AND WHAT CHALLENGES HAVE YOU 

5497
04:06:07,886 --> 04:06:08,353
FACED.

5498
04:06:08,353 --> 04:06:18,763
STARTING WITH DR. BORUE.

5499
04:06:24,235 --> 04:06:32,510
I STARTED OUT DOING RESEARCH 

5500
04:06:32,510 --> 04:06:33,945
DURING TRAINING AS A MEDICAL 

5501
04:06:33,945 --> 04:06:34,279
SCIENTIST.

5502
04:06:34,279 --> 04:06:36,581
I'VE DEDICATED MY CLINICAL 

5503
04:06:36,581 --> 04:06:40,885
PRACTICE TO SERVING AUTISTIC 

5504
04:06:40,885 --> 04:06:42,854
INDIVIDUALS AND I ALSO MYSELF AM

5505
04:06:42,854 --> 04:06:53,398
A LATE-DIAGNOSED AUTISTIC ADULT.

5506
04:06:54,699 --> 04:06:55,266
MATER

5507
04:06:55,266 --> 04:06:57,135
IN TERMS OF THE CHALLENGES SOME 

5508
04:06:57,135 --> 04:06:59,003
HAVE BEEN ALREADY ECHOED IN THE 

5509
04:06:59,003 --> 04:07:00,538
PRESENTATIONS TODAY.

5510
04:07:00,538 --> 04:07:04,843
PROBABLY THE BIGGEST ONE 

5511
04:07:04,843 --> 04:07:06,611
CLINICALLY AS WELL AS 

5512
04:07:06,611 --> 04:07:08,613
EXPERIENCED PERSONALLY IS THE 

5513
04:07:08,613 --> 04:07:10,381
LACK OF TRAINING MOST MENTAL 

5514
04:07:10,381 --> 04:07:11,416
HEALTH PROVIDERS HAVE WITH 

5515
04:07:11,416 --> 04:07:11,649
AUTISM.

5516
04:07:11,649 --> 04:07:20,692
BECAUSE OF THAT LACK OF TRAINING

5517
04:07:20,692 --> 04:07:31,002
THERE IS SO MANY 

5518
04:07:31,603 --> 04:07:32,537
MISUNDERSTANDING AND 

5519
04:07:32,537 --> 04:07:33,471
MISDIAGNOSIS AND BY THE TIME 

5520
04:07:33,471 --> 04:07:35,940
THEY GET TO MY PRACTICE THEY 

5521
04:07:35,940 --> 04:07:38,610
HAVE DOZENS OF PROVIDERS THAT 

5522
04:07:38,610 --> 04:07:40,745
MISSED THEM BEING ON THE 

5523
04:07:40,745 --> 04:07:43,114
SPECTRUM, MISDIAGNOSED IT AS 

5524
04:07:43,114 --> 04:07:45,583
SOMETHING ELSE OR SIMPLY NOT 

5525
04:07:45,583 --> 04:07:50,622
KNOWING HOW TO ACTUALLY PROVIDE 

5526
04:07:50,622 --> 04:07:53,892
MEANINGFUL HELP FOR THEM.

5527
04:07:53,892 --> 04:07:59,163
SO I THINK TRAINING INDIVIDUALS 

5528
04:07:59,163 --> 04:08:04,035
AND TRAINING PROVIDERS TO 

5529
04:08:04,035 --> 04:08:05,503
UNDERSTAND WHAT AUTISM IS AND 

5530
04:08:05,503 --> 04:08:10,608
ISN'T IS A CRUCIAL PIECE OF THE 

5531
04:08:10,608 --> 04:08:17,115
PUZZLE.

5532
04:08:17,115 --> 04:08:17,482
>> THANK YOU.

5533
04:08:17,482 --> 04:08:21,319
NEXT LISA MORGAN IN THE ROOM 

5534
04:08:21,319 --> 04:08:22,086
WITH US.

5535
04:08:22,086 --> 04:08:26,624
I WANT TO THANK KELLY AND KAYLA 

5536
04:08:26,624 --> 04:08:27,258
FOR SUPPORTING ME.

5537
04:08:27,258 --> 04:08:30,194
I'M AN AUTISTIC ADULT DIAGNOSED 

5538
04:08:30,194 --> 04:08:33,464
AT 48 YEARS LATER IN LIFE AND I 

5539
04:08:33,464 --> 04:08:38,136
EXPERIENCED SUICIDE, LOSS AND 

5540
04:08:38,136 --> 04:08:41,239
LIVE WITH PTSD AND ANXIETY AND 

5541
04:08:41,239 --> 04:08:43,875
DURING THE 30th YEAR OF OUR 

5542
04:08:43,875 --> 04:08:45,109
MARRIAGE MY HUSBAND DIED BY 

5543
04:08:45,109 --> 04:08:45,576
SUICIDE.

5544
04:08:45,576 --> 04:08:47,679
THE CHALLENGES HAVE ALL BEEN 

5545
04:08:47,679 --> 04:08:53,484
SAID TODAY SO THAT'S REALLY 

5546
04:08:53,484 --> 04:08:53,785
COMFORTING.

5547
04:08:53,785 --> 04:08:56,120
WE'RE MISUNDERSTOOD MARGINALIZED

5548
04:08:56,120 --> 04:08:58,222
POPULATION OF PEOPLE WHO 

5549
04:08:58,222 --> 04:08:59,891
EXPERIENCE BELONGING IN A 

5550
04:08:59,891 --> 04:09:01,793
SOCIETY BECAUSE WE'RE DITCH AND 

5551
04:09:01,793 --> 04:09:04,262
I CONTINUALLY EXPERIENCE 

5552
04:09:04,262 --> 04:09:05,863
INVALIDATION, STIGMA AND 

5553
04:09:05,863 --> 04:09:14,605
MISCONNECTIONS AS AN  AUTISTIC 

5554
04:09:14,605 --> 04:09:20,945
INDIVIDUALS AND EVEN IN MY 

5555
04:09:20,945 --> 04:09:23,214
PROGRAM BY PREVENTIONS.

5556
04:09:23,214 --> 04:09:26,651
WE'RE DYING BY SUICIDE SEVEN 

5557
04:09:26,651 --> 04:09:32,523
TIMES HIRE  -- HIGHER THAN THE 

5558
04:09:32,523 --> 04:09:33,891
REGULAR POPULATION AND THE 

5559
04:09:33,891 --> 04:09:36,127
SUPPORT AND INTERVENTIONS WE 

5560
04:09:36,127 --> 04:09:46,671
RECEIVED ARE NOT DESIGN FOR US.

5561
04:09:47,305 --> 04:09:49,540
THEY'RE DESIGN BY NON-AUTISTIC 

5562
04:09:49,540 --> 04:09:52,510
PEOPLE AND EXPECTED TO HELP US 

5563
04:09:52,510 --> 04:09:53,511
AND I'LL SHOW COMMON BELOVED 

5564
04:09:53,511 --> 04:09:56,848
ANIMALS TO SHOW WHAT I MEAN.

5565
04:09:56,848 --> 04:09:59,684
IT WOULD BE LIKE WITH A CAT 

5566
04:09:59,684 --> 04:10:01,552
USING INTERVENTIONS BEST FOR 

5567
04:10:01,552 --> 04:10:05,823
DOGS BUT THE CAT IS NOT A DOG.

5568
04:10:05,823 --> 04:10:08,960
IT'S NOT A WEIRD QUIRKY KIND OF 

5569
04:10:08,960 --> 04:10:09,594
DOG.

5570
04:10:09,594 --> 04:10:10,428
IT'S A CAT.

5571
04:10:10,428 --> 04:10:11,496
A DIFFERENT ANIMAL WHO 

5572
04:10:11,496 --> 04:10:13,331
UNDERSTANDS AND EXPERIENCE THE 

5573
04:10:13,331 --> 04:10:15,433
WORLD IN A DIFFERENT WAY AND 

5574
04:10:15,433 --> 04:10:17,268
THEY HAVE DIFFERENT SUPPORT 

5575
04:10:17,268 --> 04:10:17,535
NEEDS.

5576
04:10:17,535 --> 04:10:23,408
AND AUTISTIC PERSON IS NOT A 

5577
04:10:23,408 --> 04:10:25,076
DIFFERENT WEIRD NON AUTISTIC 

5578
04:10:25,076 --> 04:10:28,946
PERSON AND WE'RE DITFFERENT 

5579
04:10:28,946 --> 04:10:31,149
PEOPLE AND THE CHALLENGES THAT 

5580
04:10:31,149 --> 04:10:32,784
FACE AUTISTIC PEOPLE AND 

5581
04:10:32,784 --> 04:10:35,853
AVAILABILITY DOES NOT MEAN 

5582
04:10:35,853 --> 04:10:36,187
ACCESSIBILITY.

5583
04:10:36,187 --> 04:10:37,889
THAT MEANS THERE'S A NATIONAL 

5584
04:10:37,889 --> 04:10:41,259
CRISIS LINE 9-8-8 AVAILABLE BUT 

5585
04:10:41,259 --> 04:10:51,803
NOT ACCESSIBLE AND UNINTENTIONAL

5586
04:10:53,271 --> 04:10:55,339
HARM IS ROOTED IN STIGMA AND PRE

5587
04:10:55,339 --> 04:10:59,177
CONCEIVED NOTIONS REFLECTED BACK

5588
04:10:59,177 --> 04:11:01,746
ON AUTISTIC PEOPLE THE WAY 

5589
04:11:01,746 --> 04:11:03,781
PROFESSIONALS BEHAVE TOWARDS US.

5590
04:11:03,781 --> 04:11:05,716
LIVING WITH SUICIDAL IDEATION 

5591
04:11:05,716 --> 04:11:07,118
MYSELF THAT HITS STRONG AT 

5592
04:11:07,118 --> 04:11:10,621
TIMES, I REACHED OUT AND TEXTED 

5593
04:11:10,621 --> 04:11:12,890
9-8-8 IN AUGUST THIS YEAR.

5594
04:11:12,890 --> 04:11:16,461
THE CALL ENDED WITH ME BEING 

5595
04:11:16,461 --> 04:11:17,862
ACCUSED OF CAUSING CONFLICT 

5596
04:11:17,862 --> 04:11:19,597
BECAUSE I TEXTED TO CLARIFY A 

5597
04:11:19,597 --> 04:11:24,669
QUESTION ABOUT SOMETHING I 

5598
04:11:24,669 --> 04:11:29,140
DIDN'T UNDERSTAND AND THEN HUNG 

5599
04:11:29,140 --> 04:11:36,114
UP ON.

5600
04:11:36,114 --> 04:11:38,616
>> THANK YOU FOR SHARING
THAT 

5601
04:11:38,616 --> 04:11:39,817
POWERFUL TESTIMONY.

5602
04:11:39,817 --> 04:11:40,718
NEXT WE'LL HEAR FROM KAYLA 

5603
04:11:40,718 --> 04:11:50,895
RODRIGUEZ.

5604
04:11:52,697 --> 04:11:53,264
HI, EVERYONE.

5605
04:11:53,264 --> 04:11:58,136
I'M GLAD TO BE HERE.

5606
04:11:58,136 --> 04:12:04,942
FIRST OF ALL I DESCRIBE MYSELF 

5607
04:12:04,942 --> 04:12:07,879
AS AN LESBIAN AUTISTIC 

5608
04:12:07,879 --> 04:12:13,918
INDIVIDUAL AND LIGHT-SKINNED 

5609
04:12:13,918 --> 04:12:15,553
PUERTO RICAN WOMAN WITH A HEAD 

5610
04:12:15,553 --> 04:12:17,788
BAND AND SHIRT WITH FLOWERS ON 

5611
04:12:17,788 --> 04:12:20,091
AND IN MY ROOM, BASICALLY.

5612
04:12:20,091 --> 04:12:24,495
IN TERMS OF MENTAL HEALTH, I 

5613
04:12:24,495 --> 04:12:27,465
HAVE SEVERAL MENTAL ILLNESSES, 

5614
04:12:27,465 --> 04:12:31,369
OCD, DEPRESSION, ANXIETY, 

5615
04:12:31,369 --> 04:12:34,639
BINGING DISORDER AND ALSO HAVE 

5616
04:12:34,639 --> 04:12:36,707
CHRONIC ILLNESS AND TYPE 1 

5617
04:12:36,707 --> 04:12:39,177
DIABETES AND OTHER STUFF SO IT 

5618
04:12:39,177 --> 04:12:45,483
ALL AFFECTS MY MENTAL HEALTH.

5619
04:12:45,483 --> 04:12:46,851
BASICALLY I PREFER IDENTIFY 

5620
04:12:46,851 --> 04:12:48,419
FIRST LANGUAGE BECAUSE AUTISM IS

5621
04:12:48,419 --> 04:12:51,455
A PART OF WHO I AM AND PART OF A

5622
04:12:51,455 --> 04:12:54,258
SUICIDE STUDY TO CREATE A 

5623
04:12:54,258 --> 04:12:56,594
PROGRAM FOR AUTISTIC PEOPLE AND 

5624
04:12:56,594 --> 04:13:02,133
ALSO PART OF AN AUTISTIC LGBTQ 

5625
04:13:02,133 --> 04:13:07,104
STUDY AT UCLA.

5626
04:13:07,104 --> 04:13:13,844
THE CHALLENGES I SEE WITH MENTAL

5627
04:13:13,844 --> 04:13:18,115
HEALTH AND IT'S NOT A DISEASE 

5628
04:13:18,115 --> 04:13:22,720
PEOPLE OUTGROW AND THE MEDIA 

5629
04:13:22,720 --> 04:13:24,422
SHOWS PEOPLE WITH AUTISM PAINFUL

5630
04:13:24,422 --> 04:13:27,325
AND TA MAKES IT WORSE.

5631
04:13:27,325 --> 04:13:28,593
MOST THE PROBLEMS IS BECAUSE OF 

5632
04:13:28,593 --> 04:13:32,263
THE ABLIST SOCIETY.

5633
04:13:32,263 --> 04:13:34,265
I DON'T SUPPORT ANY ORGANIZATION

5634
04:13:34,265 --> 04:13:36,334
THAT SUPPORTS ADA AND TRY TO 

5635
04:13:36,334 --> 04:13:39,036
CURE, PREVENT OR TRY TO TREAT 

5636
04:13:39,036 --> 04:13:42,406
AUTISM BECAUSE ALL THESE ARE 

5637
04:13:42,406 --> 04:13:52,850
HARMFUL TO THE COMMUNITY.

5638
04:13:53,651 --> 04:13:56,520
AS A MATTER OF FACT THEY NEED TO

5639
04:13:56,520 --> 04:13:58,155
SUPPORT THEM THROUGH THEIR LIVES

5640
04:13:58,155 --> 04:13:59,957
AND THE MENTAL HEALTH 

5641
04:13:59,957 --> 04:14:01,459
PROFESSIONALS I'VE EXPERIENCE I 

5642
04:14:01,459 --> 04:14:04,362
WENT THROUGH A TERRIBLE 

5643
04:14:04,362 --> 04:14:06,163
THERAPIST WHO WAS HOMOPHOBIC TO 

5644
04:14:06,163 --> 04:14:09,066
ME AND WENT THROUGH TERRIBLE 

5645
04:14:09,066 --> 04:14:10,434
PSYCHIATRY BASICALLY LAYING ON 

5646
04:14:10,434 --> 04:14:14,572
HER KNEES TELLING MY MOM I'M NOT

5647
04:14:14,572 --> 04:14:16,007
A MIRACLE WORKER.

5648
04:14:16,007 --> 04:14:19,610
I'VE BEEN SUICIDAL SINCE I WAS 

5649
04:14:19,610 --> 04:14:19,777
11.

5650
04:14:19,777 --> 04:14:25,616
THAT'S WHEN I WROTE MY FIRST 

5651
04:14:25,616 --> 04:14:33,324
SUICIDE NOTE AND I'VE BEEN 

5652
04:14:33,324 --> 04:14:34,592
STRUGGLING SINCE THEN AND I 

5653
04:14:34,592 --> 04:14:37,762
STRUGGLE OFF AN ON AND CHANGES 

5654
04:14:37,762 --> 04:14:43,000
IN MY LIFE MADE MY MENTAL HEALTH

5655
04:14:43,000 --> 04:14:52,743
AND NOT HAVING  HAVING A JOB 

5656
04:14:52,743 --> 04:14:56,480
MAKES IT WORSE BECAUSE I DON'T 

5657
04:14:56,480 --> 04:15:01,352
HAVE MONEY BUT IT CAN HAVE 

5658
04:15:01,352 --> 04:15:05,156
TROUBLE HAVING A JOB AND MY 

5659
04:15:05,156 --> 04:15:08,192
SUICIDAL IDEATION IS CREEPING.

5660
04:15:08,192 --> 04:15:10,628
AGAIN BUT I WAS DOING BETTER FOR

5661
04:15:10,628 --> 04:15:10,861
A WHILE.

5662
04:15:10,861 --> 04:15:15,466
THANK YOU.

5663
04:15:15,466 --> 04:15:20,304
>> IAN.

5664
04:15:20,304 --> 04:15:25,843
>> I WAS DIAGNOSED IN
ADULTHOOD.

5665
04:15:25,843 --> 04:15:28,546
I SOUGHT OUT MY DIAGNOSIS UNDER 

5666
04:15:28,546 --> 04:15:33,751
MY OWN VOLITION AFTER ALIVE TIME

5667
04:15:33,751 --> 04:15:35,853
SPENT AVOIDING IT.

5668
04:15:35,853 --> 04:15:37,955
I CAME TO MY DIAGNOSIS AS IT 

5669
04:15:37,955 --> 04:15:39,423
SELF BEING SORT OF A PRIVILEGE.

5670
04:15:39,423 --> 04:15:41,525
THE CONTEXT BY WHICH I CAME TO 

5671
04:15:41,525 --> 04:15:46,063
BE DIAGNOSED IS WHAT ALLOWED ME 

5672
04:15:46,063 --> 04:15:49,834
TO IDENTIFY THE DIAGNOSIS AS 

5673
04:15:49,834 --> 04:15:51,335
EXTENDING A PRIVILEGE.

5674
04:15:51,335 --> 04:15:53,237
THE HIERARCHY OF NEEDS WERE 

5675
04:15:53,237 --> 04:15:53,437
SOLID.

5676
04:15:53,437 --> 04:15:57,007
I HAD COME IN CONTACT WITH THE 

5677
04:15:57,007 --> 04:15:58,909
DISABILITY JUSTICE COMMUNITY AND

5678
04:15:58,909 --> 04:16:00,945
SITUATED MYSELF IN RELATION TO 

5679
04:16:00,945 --> 04:16:03,414
OTHER THANE WAY AND BEING ABLE 

5680
04:16:03,414 --> 04:16:06,684
TO ENTACT WITH CLINICAL MENTAL 

5681
04:16:06,684 --> 04:16:13,524
HEALTH PROFESSIONALS I WAS ABLE 

5682
04:16:13,524 --> 04:16:18,295
TO TAKE THOSE MESSAGES AND APPLY

5683
04:16:18,295 --> 04:16:20,731
THEM TO A WIND FALL OF 

5684
04:16:20,731 --> 04:16:22,566
OPPORTUNITIES AND RESOURCES AND 

5685
04:16:22,566 --> 04:16:24,735
DID OCCUR EARLIER IN LIFE WHEN I

5686
04:16:24,735 --> 04:16:27,204
HAD BEEN COMPELLED TO INTERACT 

5687
04:16:27,204 --> 04:16:28,639
WITH MENTAL HEALTH PROFESSIONALS

5688
04:16:28,639 --> 04:16:30,641
WHO OFFERED THEIR OWN DIAGNOSES 

5689
04:16:30,641 --> 04:16:32,610
OF DIFFERENT THINGS AND WEREN'T 

5690
04:16:32,610 --> 04:16:35,479
ABLE TO TAKE INTO ACCOUNT MY 

5691
04:16:35,479 --> 04:16:35,713
HISTORY.

5692
04:16:35,713 --> 04:16:38,849
I THINK WHAT DR. BORUE SAID IS 

5693
04:16:38,849 --> 04:16:39,316
VITALLY IMPORTANT.

5694
04:16:39,316 --> 04:16:44,522
THERE NEEDS TO BE TRAINING AND 

5695
04:16:44,522 --> 04:16:49,059
RECOGNITION AND IF IT'S NOT 

5696
04:16:49,059 --> 04:16:53,164
POSSIBLE FOR ONE LEVEL OF 

5697
04:16:53,164 --> 04:16:56,300
THERAPIST TO PROBABLE DIAGNOSE 

5698
04:16:56,300 --> 04:16:58,936
THEM THAN MAYBE THE MOLT OF A 

5699
04:16:58,936 --> 04:17:00,838
SINGLE PRACTITIONER STENT RIGHT 

5700
04:17:00,838 --> 04:17:01,439
ONE.

5701
04:17:01,439 --> 04:17:06,243
IT'S NOT AS TO FIX BUT WE OUGHT 

5702
04:17:06,243 --> 04:17:07,211
NOT SHOESTRING OURSELF AND HOW 

5703
04:17:07,211 --> 04:17:08,345
CAN WE FIX IT?

5704
04:17:08,345 --> 04:17:10,080
MAYBE IT'S SET UP INCORRECTLY 

5705
04:17:10,080 --> 04:17:10,714
FROM THE JUMP.

5706
04:17:10,714 --> 04:17:16,220
I DON'T KNOW.

5707
04:17:16,220 --> 04:17:22,359
IN TERMS OF MY EXPERIENCES WITH 

5708
04:17:22,359 --> 04:17:23,994
MENTAL HEALTH IN AUTISM I THINK 

5709
04:17:23,994 --> 04:17:25,896
THE RELATIONSHIP OF THE TWO ARE 

5710
04:17:25,896 --> 04:17:26,630
COMPOUNDING.

5711
04:17:26,630 --> 04:17:30,634
ONE AMPLIFIES THE AFFECTS OF THE

5712
04:17:30,634 --> 04:17:33,237
OTHER PARTICULARLY WITH 

5713
04:17:33,237 --> 04:17:38,709
BACKGROUND RELATING TO SEVERAL 

5714
04:17:38,709 --> 04:17:40,344
TYPE OF TRAUMA.

5715
04:17:40,344 --> 04:17:50,988
THE SALIENCE AND THE ANTECEDANTS

5716
04:17:59,363 --> 04:18:00,965
PLAY IN AND HOW THAT FIT INTO 

5717
04:18:00,965 --> 04:18:04,034
BEING AN AUTISTIC PERSON.

5718
04:18:04,034 --> 04:18:08,806
THERE'S A CONSTANT FEED BABACK P

5719
04:18:08,806 --> 04:18:10,174
IS CHALLENGING.

5720
04:18:10,174 --> 04:18:12,543
WHEN I SEE THERE ARE MENTAL 

5721
04:18:12,543 --> 04:18:14,812
HEALTH INITIATIVES AWARENESS 

5722
04:18:14,812 --> 04:18:16,847
INITIATIVES AND THEY'RE USING A 

5723
04:18:16,847 --> 04:18:23,087
SPOKESPERSON ONLY WILL TO SPEAK 

5724
04:18:23,087 --> 04:18:25,623
OF ANOTHER PERSON'S MENTAL 

5725
04:18:25,623 --> 04:18:28,459
ILLNESS AND ASSAYING I MANAGE IT

5726
04:18:28,459 --> 04:18:34,932
IN X, Y, Z WAY I THINK IS A 

5727
04:18:34,932 --> 04:18:35,299
PROBLEM.

5728
04:18:35,299 --> 04:18:40,237
AND THAT OTHER ISSUES FROM THE 

5729
04:18:40,237 --> 04:18:42,106
PEOPLE PUT ON A PLATFORM AND 

5730
04:18:42,106 --> 04:18:43,841
TOLD PEOPLE TO INCREASE THEIR 

5731
04:18:43,841 --> 04:18:46,677
AWARENESS OF IT WHICH IS 

5732
04:18:46,677 --> 04:18:48,345
DOWNRIGHT DANGEROUS.

5733
04:18:48,345 --> 04:18:49,446
I'LL FINISH WITH THAT.

5734
04:18:49,446 --> 04:18:49,914
THANKS FOR HAVING ME.

5735
04:18:49,914 --> 04:18:53,450
>> THANK YOU.

5736
04:18:53,450 --> 04:18:54,818
>> MORENIKE.

5737
04:18:54,818 --> 04:18:56,053
>> YES, IT'S QUITE
INTERESTING 

5738
04:18:56,053 --> 04:18:58,322
BECAUSE WE WERE TALKING ABOUT 

5739
04:18:58,322 --> 04:19:00,591
MENTAL HEALTH AND I COULD FEEL 

5740
04:19:00,591 --> 04:19:02,526
MY MENTAL HEALTH TAKE A BIT OF A

5741
04:19:02,526 --> 04:19:04,962
DIVE WHEN YOU MENTIONED WE WERE 

5742
04:19:04,962 --> 04:19:07,197
GOING TO HAVE TO CHANGE UP THE 

5743
04:19:07,197 --> 04:19:09,133
WAY WE PLANNED THE PANEL AND 

5744
04:19:09,133 --> 04:19:10,868
THAT'S BECAUSE I HAVE NEARLY A 

5745
04:19:10,868 --> 04:19:14,905
PAGE OF JUSTIFICATIONS AS TO WHY

5746
04:19:14,905 --> 04:19:19,910
I AM ON THE PANEL BECAUSE I'VE 

5747
04:19:19,910 --> 04:19:25,482
MET A LOT OF AUTISTIC PEOPLE AND

5748
04:19:25,482 --> 04:19:29,486
PEOPLE OF COLOR AND SUFFER FROM 

5749
04:19:29,486 --> 04:19:34,558
IMPOSTER SYNDROME AND TRYING TO 

5750
04:19:34,558 --> 04:19:36,627
PREACTIVELY LITIGATE WHY I 

5751
04:19:36,627 --> 04:19:38,963
SHOULDN'T BE ON THE PANEL.

5752
04:19:38,963 --> 04:19:40,898
I'M MILDLY AUTISTIC OR HIGH 

5753
04:19:40,898 --> 04:19:43,400
FUNCTIONING TO HAVE ANY REAL 

5754
04:19:43,400 --> 04:19:44,068
UNDERSTANDING OF MENTAL HEALTH 

5755
04:19:44,068 --> 04:19:44,868
ISSUES, ETCETERA.

5756
04:19:44,868 --> 04:19:51,775
BECAUSE I CANNOT DO THAT, I WILL

5757
04:19:51,775 --> 04:19:53,477
SAY I'M SOMEONE RATHER THAN MY 

5758
04:19:53,477 --> 04:19:54,545
BIO IS ON THE IACC PAGE AND I 

5759
04:19:54,545 --> 04:20:00,017
WANT TO SAY I'M A PERSON WHO 

5760
04:20:00,017 --> 04:20:01,952
LIKE A LOT OF PEOPLE HAVE A LOT 

5761
04:20:01,952 --> 04:20:02,620
OF LAYERS.

5762
04:20:02,620 --> 04:20:06,056
MY LIFE HAS ALWAYS BEEN AND A 

5763
04:20:06,056 --> 04:20:09,793
SEA OF CONTRADICTIONS.

5764
04:20:09,793 --> 04:20:12,196
I HAVE COLLABORATED WITH GLOBAL 

5765
04:20:12,196 --> 04:20:17,101
THOUGHT LEADERS AND SPOKEN AS AN

5766
04:20:17,101 --> 04:20:19,436
INVITED EXPERT AT THE UNITED 

5767
04:20:19,436 --> 04:20:22,406
NATIONS AS SOMEONE WHO FLED FROM

5768
04:20:22,406 --> 04:20:26,210
A HOME IN PAJAMAS AND I'VE GONE 

5769
04:20:26,210 --> 04:20:28,145
TO BED HUNGRY BECAUSE I DIDN'T 

5770
04:20:28,145 --> 04:20:30,481
HAVE MONEY FOR FOOD OR PLACE TO 

5771
04:20:30,481 --> 04:20:33,851
LIVE AND SOBBED UNCONTROLLABLY 

5772
04:20:33,851 --> 04:20:36,253
BECAUSE MY CHILD WAS IN A 

5773
04:20:36,253 --> 04:20:37,254
HOSPITAL AND SHARE WHAT HAPPENED

5774
04:20:37,254 --> 04:20:39,223
AND WHAT WAS WRONG AND I WAS 

5775
04:20:39,223 --> 04:20:42,326
BEING MANIPULATED OR SORRY, 

5776
04:20:42,326 --> 04:20:46,497
PATRONIZED BY THE PEOPLE THERE.

5777
04:20:46,497 --> 04:20:48,866
I THINK FOR ME AND A LOT OF MY 

5778
04:20:48,866 --> 04:20:52,503
PEERS I HAVE A RANGE OF VARIOUS 

5779
04:20:52,503 --> 04:20:57,174
DIAGNOSES, SOME 

5780
04:20:57,174 --> 04:20:57,675
NEURODEVELOPMENT, SOME 

5781
04:20:57,675 --> 04:21:01,512
AUTOIMMUNE AND SOME PSYCHIATRIC.

5782
04:21:01,512 --> 04:21:03,280
THERE'S A LOT OF THINGS GOING ON

5783
04:21:03,280 --> 04:21:07,985
MULTIPLE TYPES OF TRAUMA.

5784
04:21:07,985 --> 04:21:13,857
I SEE THAT IMPACTING WHO WE ARE 

5785
04:21:13,857 --> 04:21:19,763
A

5786
04:21:19,763 --> 04:21:23,500
AND WHEN I WAS 11 YEARS OLD YOU 

5787
04:21:23,500 --> 04:21:28,972
AND I WAS EXTREMELY SUICIDAL.

5788
04:21:28,972 --> 04:21:33,477
I HAD A SUICIDAL THOUGHT FROM 11

5789
04:21:33,477 --> 04:21:36,613
AND 12 AND THINGS I'VE STRUGGLED

5790
04:21:36,613 --> 04:21:41,118
THROUGHOUT MY LIFE BEING QUOTE, 

5791
04:21:41,118 --> 04:21:45,389
UNQUOTE, SUCCESSFUL AND GIFTED 

5792
04:21:45,389 --> 04:21:47,057
AND THAT DOESN'T INCLUDE ANY 

5793
04:21:47,057 --> 04:21:49,393
SEXUAL ABUSE ONE MIGHT HAVE 

5794
04:21:49,393 --> 04:21:56,467
ENCOUNTER AND DOESN'T ERASE THE 

5795
04:21:56,467 --> 04:22:06,977
SENSITIVITY AND THERE'S SOME 

5796
04:22:07,377 --> 04:22:07,945
DEMENTIA.

5797
04:22:07,945 --> 04:22:13,016
I HAVE THAT AND AUTOIMMUNE 

5798
04:22:13,016 --> 04:22:18,689
DISEASE, RHEUMATOID ARTHRITIS 

5799
04:22:18,689 --> 04:22:20,991
AND A PARENT.

5800
04:22:20,991 --> 04:22:22,159
YOU HAVE TO MANAGE THIS AND DO 

5801
04:22:22,159 --> 04:22:24,495
ALL THE THINGS AND STILL BE 

5802
04:22:24,495 --> 04:22:27,097
THERE FOR THE ONES WHO DEPEND 

5803
04:22:27,097 --> 04:22:30,934
UPON YOU WHO NEED YOU, WHO LOVE 

5804
04:22:30,934 --> 04:22:32,903
YOU AND WHO WHOM HAVE THEIR OWN 

5805
04:22:32,903 --> 04:22:38,308
CHALLENGES IN A WAY WHERE IT'S 

5806
04:22:38,308 --> 04:22:43,514
AUTISM OR NOT IN A WORLD WHERE 

5807
04:22:43,514 --> 04:22:45,883
THINGS ARE OCCURRING AND 

5808
04:22:45,883 --> 04:22:47,851
MICROGRESSIONS CAN CAN YOU TEASE

5809
04:22:47,851 --> 04:22:53,991
OUT AND HAVE AN UNDERSTANDING 

5810
04:22:53,991 --> 04:22:58,629
AND DEALING WITH THE BASE LEVEL 

5811
04:22:58,629 --> 04:22:59,129
OF STRUGGLE.

5812
04:22:59,129 --> 04:23:03,767
AND THE PROPER PRACTICES AND 

5813
04:23:03,767 --> 04:23:06,870
LOOK AT MENTAL INTEGRATED CARE 

5814
04:23:06,870 --> 04:23:10,607
TO ADDRESS THEM AND HAVE 

5815
04:23:10,607 --> 04:23:15,345
SPECIALISTS TO UNDERSTAND WHAT'S

5816
04:23:15,345 --> 04:23:17,848
HAP ZEPENING AND IF THERE'S 

5817
04:23:17,848 --> 04:23:19,483
CONCERNS AS A CAREGIVER AND 

5818
04:23:19,483 --> 04:23:21,118
PEOPLE RELYING AND EXTERNAL 

5819
04:23:21,118 --> 04:23:24,888
FACTORS TO DETERMINE IF YOU'RE 

5820
04:23:24,888 --> 04:23:31,261
OKAY OR NOT AND IN A WAY THAT IS

5821
04:23:31,261 --> 04:23:32,196
TYPICAL YOU ESSENTIALLY HAVE THE

5822
04:23:32,196 --> 04:23:41,672
INGREDIENTS FOR A PERFECT STORM.

5823
04:23:41,672 --> 04:23:43,173
>> ANGIE.

5824
04:23:43,173 --> 04:23:46,510
>> I'M THE MOM OF A YOUNG
ADULT 

5825
04:23:46,510 --> 04:23:47,411
SON WITH AN AUTISM DIAGNOSIS.

5826
04:23:47,411 --> 04:23:50,581
I THINK IT MAY BE HELPFUL TO 

5827
04:23:50,581 --> 04:23:52,883
BRIEFLY EXPLAIN MY SON HAS 

5828
04:23:52,883 --> 04:23:53,851
MODERATE INTELLECTUAL 

5829
04:23:53,851 --> 04:23:54,151
DISABILITY.

5830
04:23:54,151 --> 04:24:02,626
HE NEEDS SIGNIFICANT SUPPORT FOR

5831
04:24:02,626 --> 04:24:07,598
COMMUNICATION AND HAS A HISTORY 

5832
04:24:07,598 --> 04:24:16,406
OF AGGRESSION, DESTRUCTION AND 

5833
04:24:16,406 --> 04:24:18,208
SELF-INJURY AND I WON'T BE USING

5834
04:24:18,208 --> 04:24:19,610
HIS NAME.

5835
04:24:19,610 --> 04:24:21,545
WHEN I THINK OF MENTAL HEALTH 

5836
04:24:21,545 --> 04:24:23,947
SPECIFIC TO THE AUTISM COMMUNITY

5837
04:24:23,947 --> 04:24:25,115
I WOULD SAY IT'S IMPORTANT FOR 

5838
04:24:25,115 --> 04:24:26,917
THINGS LIKE SAFETY AND INCLUSION

5839
04:24:26,917 --> 04:24:28,852
AND WITH THAT IN MIND LET ME 

5840
04:24:28,852 --> 04:24:32,089
EXPLAIN SOME CHALLENGES THAT WE 

5841
04:24:32,089 --> 04:24:34,491
FACE FINDING SERVICES 

5842
04:24:34,491 --> 04:24:35,959
PARTICULARLY WITH RESPECT TO 

5843
04:24:35,959 --> 04:24:38,295
SUPPORTING HIS AGGRESSION.

5844
04:24:38,295 --> 04:24:40,898
IN SCHOOL, WE MET SOME WONDERFUL

5845
04:24:40,898 --> 04:24:44,067
PEOPLE ALONG THE WAY BUT WE'VE 

5846
04:24:44,067 --> 04:24:45,903
ALSO ENCOUNTERED SITUATIONS LIKE

5847
04:24:45,903 --> 04:24:49,306
WHEN SPECIAL EDUCATION STAFF 

5848
04:24:49,306 --> 04:24:50,540
USED A UNIFORMED RESOURCE POLICE

5849
04:24:50,540 --> 04:24:52,209
OFFICER IN PUBLIC WAYS.

5850
04:24:52,209 --> 04:24:55,913
WE GENERALLY STRUGGLED TO FIND 

5851
04:24:55,913 --> 04:24:57,214
THE RIGHT SCHOOL ENVIRONMENT 

5852
04:24:57,214 --> 04:25:00,183
WITH SEVERAL PLACEMENT CHANGES 

5853
04:25:00,183 --> 04:25:01,985
EACH BECOMING INCREASINGLY MORE 

5854
04:25:01,985 --> 04:25:06,323
RESTRICTIVE NOT CONDUCIVE TO 

5855
04:25:06,323 --> 04:25:09,426
SUPPORTING MY SON.

5856
04:25:09,426 --> 04:25:12,029
HE CURRENTLY RECEIVED SCHOOL 

5857
04:25:12,029 --> 04:25:16,433
SERVICES, TWO HOURS A DAY AS A 

5858
04:25:16,433 --> 04:25:19,069
YOUNG ADULT WHICH ARE FOCUSSED 

5859
04:25:19,069 --> 04:25:20,470
ON COMMUNICATION AND 

5860
04:25:20,470 --> 04:25:23,907
SELF-ADVOCACY SKILLS BUT AT THIS

5861
04:25:23,907 --> 04:25:25,409
STAGE IT'S DISAPPOINTING HE'S 

5862
04:25:25,409 --> 04:25:28,645
ALONE WITH NO PEER INTERACTION 

5863
04:25:28,645 --> 04:25:29,179
AND NO COMMUNITY-BASED 

5864
04:25:29,179 --> 04:25:30,614
INSTRUCTION.

5865
04:25:30,614 --> 04:25:35,385
FROM A THERAPY STANDPOINT, MY 

5866
04:25:35,385 --> 04:25:37,354
SON HAS BEEN DISCHARGED THREE 

5867
04:25:37,354 --> 04:25:38,822
TIMES AND NOT ACCEPTED FROM 

5868
04:25:38,822 --> 04:25:40,257
OTHERS BECAUSE THEY WERE NOT SET

5869
04:25:40,257 --> 04:25:41,158
UP TO HANDLE HIS INTENSE 

5870
04:25:41,158 --> 04:25:41,425
BEHAVIOR.

5871
04:25:41,425 --> 04:25:45,062
.

5872
04:25:45,062 --> 04:25:47,331
AS AN ADULT THERE'S ACCESS FOR 

5873
04:25:47,331 --> 04:25:51,969
RESPITE AND CLS WE'VE NEVER BEEN

5874
04:25:51,969 --> 04:25:53,036
ABLE TO STAFF AND DOESN'T SEEM 

5875
04:25:53,036 --> 04:25:55,005
TO BE ANY INFRASTRUCTURE IN 

5876
04:25:55,005 --> 04:25:58,608
PLACE TO PROVIDE THE STAFFING 

5877
04:25:58,608 --> 04:26:00,577
FOR THAT.

5878
04:26:00,577 --> 04:26:03,013
WE HAVE USED OUT PATIENT 

5879
04:26:03,013 --> 04:26:04,414
PSYCHIATRIC ASSISTANCE AND 

5880
04:26:04,414 --> 04:26:06,049
MEDICATION HAS BEEN HELPFUL BUT 

5881
04:26:06,049 --> 04:26:08,785
NOT LIFE CHANGING.

5882
04:26:08,785 --> 04:26:10,620
JUST FIELD LIKE I'M DEALING WITH

5883
04:26:10,620 --> 04:26:16,093
SERIOUS SIDE EFFECTS AND FROM A 

5884
04:26:16,093 --> 04:26:17,294
CRISIS STANDPOINT UNFORTUNATELY 

5885
04:26:17,294 --> 04:26:21,765
IF I FIND MYSELF IN AN UNSAFE 

5886
04:26:21,765 --> 04:26:22,966
SITUATION THE ONLY OPTION IS TO 

5887
04:26:22,966 --> 04:26:25,802
CALL THE POLICE OR TAKE MY SON 

5888
04:26:25,802 --> 04:26:30,774
TO THE EMERGENCY ROOM.

5889
04:26:30,774 --> 04:26:32,242
NEITHER OF WHICH I'VE USED 

5890
04:26:32,242 --> 04:26:33,944
BECAUSE THEY DON'T SEEM LIKE 

5891
04:26:33,944 --> 04:26:36,079
POTENTIAL OPTION AN POTENTIAL 

5892
04:26:36,079 --> 04:26:38,782
RISK FOR SERIOUSLY MORE TRAUMA.

5893
04:26:38,782 --> 04:26:39,983
AND THERE'S SITUATIONS LIKE WHEN

5894
04:26:39,983 --> 04:26:42,352
I GOT A PHONE CALL THAT MY 

5895
04:26:42,352 --> 04:26:44,788
DAUGHTER WAS IN A BAD ACCIDENT 

5896
04:26:44,788 --> 04:26:47,357
AND BEING TAKEN TO THE HOSPITAL.

5897
04:26:47,357 --> 04:26:50,260
IN THAT MOMENT I HAD NO ONE TO 

5898
04:26:50,260 --> 04:26:51,561
WATCH MY SON AND HAD NO NATURAL 

5899
04:26:51,561 --> 04:26:58,335
SUPPORTS TO HELP AND THERE'S NO 

5900
04:26:58,335 --> 04:26:59,069
EMERGENCY OPTION AND CREATE 

5901
04:26:59,069 --> 04:27:01,638
SAFETY CONCERN FOR MY FAMILY AND

5902
04:27:01,638 --> 04:27:02,939
IT'S THAT CREATION OF SAFETY 

5903
04:27:02,939 --> 04:27:04,975
CONCERNS AND LACK OF SERVICES 

5904
04:27:04,975 --> 04:27:08,412
FROM SCHOOL AND IN THE COMMUNITY

5905
04:27:08,412 --> 04:27:10,080
COMBINED WITH NEEDING TO EARN A 

5906
04:27:10,080 --> 04:27:13,383
LIVING AND TAKE CARE OF OTHER 

5907
04:27:13,383 --> 04:27:16,420
FAMILIES THAT LET US TO LOOK FOR

5908
04:27:16,420 --> 04:27:26,063
A GROUP HOME AND WE HAVEN'T 

5909
04:27:26,063 --> 04:27:27,631
EVENTUALLY FOUND ONE AND SEEM 

5910
04:27:27,631 --> 04:27:31,268
BETTER PREPARED THAN MOST HOMES 

5911
04:27:31,268 --> 04:27:33,103
BUT PROBABLY MINIMALLY PREPARED 

5912
04:27:33,103 --> 04:27:36,606
TO HANDLE INTENSE BEHAVIOR AND 

5913
04:27:36,606 --> 04:27:38,975
THERE ON THE WEEKENDS AND WE'VE 

5914
04:27:38,975 --> 04:27:40,043
HAD DISCUSSIONS THAT INDICATE 

5915
04:27:40,043 --> 04:27:43,780
THEY'RE NOT SURE THEY CAN 

5916
04:27:43,780 --> 04:27:46,083
CONTINUE TO SUPPORT OUR SON 

5917
04:27:46,083 --> 04:27:48,151
WHILE WE'RE SIMULTANEOUSLY 

5918
04:27:48,151 --> 04:27:53,490
RECEIVE REPORTS FROM OUR MENTAL 

5919
04:27:53,490 --> 04:27:55,292
HEALTH AUTHORITY THEY'RE 

5920
04:27:55,292 --> 04:27:56,960
DECREASING SUPPORT AND THAT'S 

5921
04:27:56,960 --> 04:27:58,295
WHERE WE ARE RIGHT NOW.

5922
04:27:58,295 --> 04:28:01,498
>> THANK YOU.

5923
04:28:01,498 --> 04:28:04,134
I'LL ASK ANOTHER QUESTION TO ALL

5924
04:28:04,134 --> 04:28:06,269
THE PANELISTS AND IF YOU CAN 

5925
04:28:06,269 --> 04:28:08,305
KEEP IT SOMEWHAT BRIEF TO HEAR 

5926
04:28:08,305 --> 04:28:14,411
FROM EVERYBODY, WHATTY -- WHAT 

5927
04:28:14,411 --> 04:28:16,847
KEY CHANGES ARE NEEDED FOR 

5928
04:28:16,847 --> 04:28:19,116
AUTISTIC PEOPLE AND ENSURE THEIR

5929
04:28:19,116 --> 04:28:26,523
SERVICE ARE MET.

5930
04:28:26,523 --> 04:28:29,459
>> ONE OF THE CRUCIAL
THINGS IS 

5931
04:28:29,459 --> 04:28:31,061
BETTER RECOGNITION FOR THE 

5932
04:28:31,061 --> 04:28:38,101
DISABILITY AUTISTIC PEOPLE HAVE.

5933
04:28:38,101 --> 04:28:41,204
EVEN HIGH FUNCTIONAL AUTISTIC 

5934
04:28:41,204 --> 04:28:43,807
PEOPLE CAN HAVE PERIODS WHERE 

5935
04:28:43,807 --> 04:28:46,276
THEY ARE PROFOUNDLY DISABLED BY 

5936
04:28:46,276 --> 04:28:49,312
THEIR SYMPTOMS IN A WAY NOT 

5937
04:28:49,312 --> 04:28:50,714
CONSISTENT ACROSS TIME.

5938
04:28:50,714 --> 04:28:52,449
THIS GETS MISUNDERSTOOD SO 

5939
04:28:52,449 --> 04:28:54,117
FREQUENTLY BY PEOPLE THAT ARE 

5940
04:28:54,117 --> 04:28:55,552
NOT FAMILIAR WITH AUTISM BECAUSE

5941
04:28:55,552 --> 04:28:57,888
THEY THINK, HEY, I TAUGHT THIS 

5942
04:28:57,888 --> 04:28:58,788
PERSON A SKILL.

5943
04:28:58,788 --> 04:29:01,958
THEY SHOULD BE ABLE TO USE THIS 

5944
04:29:01,958 --> 04:29:04,995
SKILL ALL THE TIME AND ALL 

5945
04:29:04,995 --> 04:29:05,929
SETTINGS REGARDLESS OF WHATEVER 

5946
04:29:05,929 --> 04:29:07,230
ELSE IS GOING ON.

5947
04:29:07,230 --> 04:29:14,037
AND THAT'S SIMPLY NOT THE CASE.

5948
04:29:14,037 --> 04:29:16,173
HIGH FUNCTIONING CAN VARY 

5949
04:29:16,173 --> 04:29:17,674
DRAMATICALLY DEPENDING ON 

5950
04:29:17,674 --> 04:29:20,844
WHETHER WE'RE WELL RESTED, 

5951
04:29:20,844 --> 04:29:23,180
WHETHER THERE ARE OTHER SENSORY 

5952
04:29:23,180 --> 04:29:24,447
THINGS INTERFERING.

5953
04:29:24,447 --> 04:29:25,549
WHETHER THERE'S OTHER THINGS 

5954
04:29:25,549 --> 04:29:30,987
GOING ON IN OUR LIVES.

5955
04:29:30,987 --> 04:29:32,622
SO MUCH SO WE AS A PROFESSIONAL 

5956
04:29:32,622 --> 04:29:34,591
YOU SEE ME HERE TODAY IN A 

5957
04:29:34,591 --> 04:29:42,666
SETTING WHERE I CAN COMMUNICATE 

5958
04:29:42,666 --> 04:29:43,500
EFFECTIVELY ABOUT MY EXPERIENCES

5959
04:29:43,500 --> 04:29:45,769
AND MY UNDERSTANDING OF THINGS.

5960
04:29:45,769 --> 04:29:48,038
BUT IN A DIFFERENT SETTING I CAN

5961
04:29:48,038 --> 04:29:50,607
HAVE A MELT DOWN OVER A VACUUM 

5962
04:29:50,607 --> 04:29:51,208
CLEANER.

5963
04:29:51,208 --> 04:29:52,776
THAT KIND OF DISPARITY AND 

5964
04:29:52,776 --> 04:29:54,211
FUNCTIONING IS SOMETHING WE 

5965
04:29:54,211 --> 04:29:58,215
DON'T SEE VERY OFTEN OUTSIDE OF 

5966
04:29:58,215 --> 04:29:58,448
AUTISM.

5967
04:29:58,448 --> 04:30:02,319
BUT WITHIN AUTISM IT'S THE NORM.

5968
04:30:02,319 --> 04:30:05,155
AND IT CAN INTERFERE 

5969
04:30:05,155 --> 04:30:08,191
SUBSTANTIALLY WITH DAILY 

5970
04:30:08,191 --> 04:30:09,326
FUNCTIONING FOR A LOT OF 

5971
04:30:09,326 --> 04:30:10,627
AUTISTIC INDIVIDUALS IN A WAY 

5972
04:30:10,627 --> 04:30:12,762
THAT DOESN'T GET RECOGNIZED WELL

5973
04:30:12,762 --> 04:30:14,998
BY OUR SYMPTOM.

5974
04:30:14,998 --> 04:30:17,767
SO WHEN I HAVE AUTISTIC 

5975
04:30:17,767 --> 04:30:19,836
INDIVIDUALS TRY TO GET ON THE 

5976
04:30:19,836 --> 04:30:24,741
WAIVER OR TRY TO GET GOVERNMENT 

5977
04:30:24,741 --> 04:30:25,875
DISABILITY THEY'RE NOT ABLE TO 

5978
04:30:25,875 --> 04:30:30,013
GET IT BECAUSE THE WAY THESE 

5979
04:30:30,013 --> 04:30:32,749
THINGS ARE DETERMINED DOESN'T 

5980
04:30:32,749 --> 04:30:34,918
RECOGNIZE THE TYPE OF 

5981
04:30:34,918 --> 04:30:36,419
INTERMITTENT DISABILITIES THAT 

5982
04:30:36,419 --> 04:30:39,589
AUTISTIC PEOPLE HAVE.

5983
04:30:39,589 --> 04:30:41,424
AND THEN THERE'S ADDITIONAL GATE

5984
04:30:41,424 --> 04:30:41,658
KEEPING.

5985
04:30:41,658 --> 04:30:42,525
FOR INSTANCE, TO GET ON THE 

5986
04:30:42,525 --> 04:30:45,462
AUTISM WAIVER YOU NEED TO HAVE 

5987
04:30:45,462 --> 04:30:48,098
[INDISCERNIBLE] WELL, AS AN 

5988
04:30:48,098 --> 04:30:51,901
ADULT, ACCESSING THE ADOLF 

5989
04:30:51,901 --> 04:30:54,204
TESTING IS INCREDIBLY DIFFICULT.

5990
04:30:54,204 --> 04:30:57,540
I TRIED REFERRING DOZENS OF 

5991
04:30:57,540 --> 04:30:58,708
ADULTS FOR AUTISM WAIVER 

5992
04:30:58,708 --> 04:30:59,442
SERVICES THEY NEED AND CAN'T 

5993
04:30:59,442 --> 04:31:09,152
GET.

5994
04:31:09,152 --> 04:31:12,255
ACCESS TO SERVICES IS CRUCIAL 

5995
04:31:12,255 --> 04:31:13,390
AND HAVING OUR DISABILITIES BE 

5996
04:31:13,390 --> 04:31:13,690
RECOGNIZED.

5997
04:31:13,690 --> 04:31:15,125
THAT'S PROBABLY THE BIGGEST 

5998
04:31:15,125 --> 04:31:16,793
CHANGE I WOULD LIKE IT SEE 

5999
04:31:16,793 --> 04:31:21,665
HAPPEN IN ADDITION TO ADDITIONAL

6000
04:31:21,665 --> 04:31:23,867
TRAINING IS HAVING BETTER 

6001
04:31:23,867 --> 04:31:26,102
RECOGNITION OF DISABILITY 

6002
04:31:26,102 --> 04:31:26,870
RELATED TO AUTISM.

6003
04:31:26,870 --> 04:31:30,807
>> THANK YOU.

6004
04:31:30,807 --> 04:31:38,448
LISA MORGAN.

6005
04:31:38,448 --> 04:31:40,417
I'D LIKE TO IMPROVE ACCESSIBLE.

6006
04:31:40,417 --> 04:31:43,887
I THINK WE NEED TO ACCESSIBILITY

6007
04:31:43,887 --> 04:31:46,623
AND REDUCE UNINTENTIONAL HARM 

6008
04:31:46,623 --> 04:31:48,291
AND MAKE THE CENTERS AND CRISIS 

6009
04:31:48,291 --> 04:31:51,428
CALL AND TECH CENTERS, FIRST 

6010
04:31:51,428 --> 04:31:52,495
RESPONDERS AND EVEN CLINICIANS 

6011
04:31:52,495 --> 04:31:57,067
SAFE AND ACCESSIBLE FOR AUTISTIC

6012
04:31:57,067 --> 04:31:58,368
PEOPLE BY REQUIRING ANYONE 

6013
04:31:58,368 --> 04:32:00,670
SUPPORTING AUTISTIC PEOPLE TO BE

6014
04:32:00,670 --> 04:32:03,840
CREDENTIALED BY COMPLETING A 

6015
04:32:03,840 --> 04:32:04,874
TRAINING AND SUBSEQUENT 

6016
04:32:04,874 --> 04:32:06,609
EVALUATION DEVELOPED BY AUTISTIC

6017
04:32:06,609 --> 04:32:12,449
PEOPLE IN COLLABORATION WITH 

6018
04:32:12,449 --> 04:32:15,385
NON-AUTISTIC ALLIES.

6019
04:32:15,385 --> 04:32:16,419
THE ONLY PEOPLE TO KNOW WHAT 

6020
04:32:16,419 --> 04:32:17,687
IT'S LIKE TO LIVE WITH AUTISTIC 

6021
04:32:17,687 --> 04:32:20,423
PEOPLE HAVE AUTISTIC PEOPLE AND 

6022
04:32:20,423 --> 04:32:21,591
IMPROVING SERVICES OF AUTISTIC 

6023
04:32:21,591 --> 04:32:22,625
PEOPLE NEED TO BE DESIGN, 

6024
04:32:22,625 --> 04:32:24,361
DEVELOPED AND IMPLEMENTED BY 

6025
04:32:24,361 --> 04:32:26,196
AUTISTIC PEOPLE IN COLLABORATION

6026
04:32:26,196 --> 04:32:28,231
WITH NON-AUTISTIC ALLIES.

6027
04:32:28,231 --> 04:32:30,333
THE SOLUTION TO IMPROVED MENTAL 

6028
04:32:30,333 --> 04:32:32,836
HEALTH IN AUTISTIC PEOPLE AND 

6029
04:32:32,836 --> 04:32:34,971
ENSURE THEIR SERVICE NEEDS ARE 

6030
04:32:34,971 --> 04:32:36,740
BEING MET AND MORE IMPORTANTLY 

6031
04:32:36,740 --> 04:32:40,844
THEY'RE NOT BEING 

6032
04:32:40,844 --> 04:32:44,748
UNINTENTIOUNINTENTIONAL 

6033
04:32:44,748 --> 04:32:46,616
LY HARMED LIES WITH AUTISTIC 

6034
04:32:46,616 --> 04:32:46,850
PEOPLE.

6035
04:32:46,850 --> 04:32:53,022
THAT WAS IN FIRST ONE I MISSED.

6036
04:32:53,022 --> 04:32:56,659
AUTISTIC PEOPLE ARE DYING UP TO 

6037
04:32:56,659 --> 04:32:59,162
SEVEN TIMES HIGHER THAN THE 

6038
04:32:59,162 --> 04:33:01,131
REGULAR POPULATION AND THEY'RE 

6039
04:33:01,131 --> 04:33:04,000
NOT INCLUDED IN THE LIST OF 

6040
04:33:04,000 --> 04:33:04,667
VULNERABLE POPULATIONS.

6041
04:33:04,667 --> 04:33:05,969
THE RESOURCES BEING DEVELOPED BY

6042
04:33:05,969 --> 04:33:08,972
THE WORK GROUP THAT I FOUNDED 

6043
04:33:08,972 --> 04:33:12,342
AND STILL CO-CHAIR IN 2017, 

6044
04:33:12,342 --> 04:33:14,077
THEY'RE BEING USED IN BRAZIL AND

6045
04:33:14,077 --> 04:33:19,516
THE MAINSTREAM MEDIA IN BRAZIL 

6046
04:33:19,516 --> 04:33:21,584
ARE SUPPORTING THEM AND HAVING A

6047
04:33:21,584 --> 04:33:22,752
SOCIAL IMPACT.

6048
04:33:22,752 --> 04:33:26,623
THEY SEE THE VALUE OF HAVING 

6049
04:33:26,623 --> 04:33:29,459
AUTISM SPECIFIC RESOURCES 

6050
04:33:29,459 --> 04:33:30,760
DEVELOPED WITH AUTISTIC PEOPLE 

6051
04:33:30,760 --> 04:33:32,629
AND THE RESOURCES TO SUPPORT 

6052
04:33:32,629 --> 04:33:36,599
AUTISTIC PEOPLE AS AUTISTIC 

6053
04:33:36,599 --> 04:33:41,171
PEOPLE ARE VALUABLE SO I'D LOVE 

6054
04:33:41,171 --> 04:33:44,207
IT IF WE WOULD USE THIS.

6055
04:33:44,207 --> 04:33:44,774
>> THANK YOU.

6056
04:33:44,774 --> 04:33:53,149
KAYLA RODRIGUEZ.

6057
04:33:53,149 --> 04:33:54,717
SO TWO THINGS BUT I'LL TRY TO BE

6058
04:33:54,717 --> 04:34:01,357
AS BRIEF AS I CAN.

6059
04:34:01,357 --> 04:34:03,993
FIRST, PROFESSIONALS NEED TO BE 

6060
04:34:03,993 --> 04:34:05,628
BETTER TRAINED TO PREVENT 

6061
04:34:05,628 --> 04:34:08,064
BURNOUT AND PREVENT CRISIS.

6062
04:34:08,064 --> 04:34:10,633
I'D LIKE TO SEE DOCTORS TREAT 

6063
04:34:10,633 --> 04:34:11,634
AUTISTIC PEOPLE AS HUMANS 

6064
04:34:11,634 --> 04:34:13,403
BECAUSE AUTISTIC PEOPLE ARE 

6065
04:34:13,403 --> 04:34:17,006
HUMANS TOO THOUGH WE GO THROUGH 

6066
04:34:17,006 --> 04:34:18,408
THE SAME THINGS AS EVERYBODY 

6067
04:34:18,408 --> 04:34:20,643
ELSE DOES JUST IN DIFFERENT WAYS

6068
04:34:20,643 --> 04:34:26,616
AND I JUST WISH DOCTORS DON'T 

6069
04:34:26,616 --> 04:34:28,585
JUST FOCUS ON THE AUTISM AND 

6070
04:34:28,585 --> 04:34:30,119
FOCUS ON EVERYTHING ELSE THEY 

6071
04:34:30,119 --> 04:34:31,654
HAVE INCLUDING MENTAL HEALTH 

6072
04:34:31,654 --> 04:34:33,389
WHICH I BELIEVE IS JUST AS 

6073
04:34:33,389 --> 04:34:35,258
IMPORTANT AS PHYSICAL HEALTH.

6074
04:34:35,258 --> 04:34:36,626
IT REALLY IS.

6075
04:34:36,626 --> 04:34:38,795
MENTAL HEALTH SHOULD BE TAKEN 

6076
04:34:38,795 --> 04:34:40,396
MORE SERIOUSLY AND SHOULDN'T BE 

6077
04:34:40,396 --> 04:34:42,765
A TABOO TOPIC.

6078
04:34:42,765 --> 04:34:46,236
I ALSO BELIEVE THAT LIKE SPECIAL

6079
04:34:46,236 --> 04:34:47,670
INTERESTS THAT PEOPLE HAVE ARE 

6080
04:34:47,670 --> 04:34:49,839
GOOD BECAUSE THEY BRING AUTISTIC

6081
04:34:49,839 --> 04:34:53,176
PEOPLE JOY AND SHOULDN'T BE 

6082
04:34:53,176 --> 04:34:59,182
TAKEN AWAY FROM THEM AND TRANS 

6083
04:34:59,182 --> 04:35:01,050
PEOPLE FOR EXAMPLE CAN BE 

6084
04:35:01,050 --> 04:35:02,852
AUTISTIC AND PEOPLE OF COLOR CAN

6085
04:35:02,852 --> 04:35:06,589
BE AUTISTIC SO WE'RE MOVING 

6086
04:35:06,589 --> 04:35:09,492
GENDER AFFIRMING CARE CAN WORSEN

6087
04:35:09,492 --> 04:35:11,394
THE MENTAL HEALTH OF AUTISTIC 

6088
04:35:11,394 --> 04:35:13,596
PEOPLE IN THOSE INTERSECTIONS.

6089
04:35:13,596 --> 04:35:16,366
AND AUTISTIC PEOPLE DEAL WITH 

6090
04:35:16,366 --> 04:35:18,334
TRAUMA AND AUTISTIC PEOPLE NEED 

6091
04:35:18,334 --> 04:35:20,103
RESOURCES SPECIFICALLY MADE FOR 

6092
04:35:20,103 --> 04:35:27,510
THEM TO HELP DEAL WITH TRAUMA.

6093
04:35:27,510 --> 04:35:32,615
BECAUSE WE DEAL WITH TRAUMA A 

6094
04:35:32,615 --> 04:35:34,617
LOT LIVING IN A WORLD THAT 

6095
04:35:34,617 --> 04:35:40,223
DOESN'T ACCOMMODATE OR ACCEPT US

6096
04:35:40,223 --> 04:35:43,459
WE NEED TRAUMA RESOURCES 

6097
04:35:43,459 --> 04:35:45,395
SPECIFICALLY FOR US AND I 

6098
04:35:45,395 --> 04:35:46,362
STRUGGLE WITH TRAUMATIC BECAUSE 

6099
04:35:46,362 --> 04:35:47,230
OF MY PTSD.

6100
04:35:47,230 --> 04:35:52,969
I DON'T KNOW HOW TO DEAL WITH 

6101
04:35:52,969 --> 04:35:53,736
IT.

6102
04:35:53,736 --> 04:35:54,837
I DON'T KNOW HOW PEOPLE ARE 

6103
04:35:54,837 --> 04:35:55,838
SUPPOSED TO WITH THE RESOURCES 

6104
04:35:55,838 --> 04:35:56,372
OUT THERE.

6105
04:35:56,372 --> 04:35:58,441
THAT'S WHAT WE SEE.

6106
04:35:58,441 --> 04:36:03,513
HOW DO AUTISTIC PEOPLE DEAL WITH

6107
04:36:03,513 --> 04:36:04,914
TRAUMA LIKE THAT?

6108
04:36:04,914 --> 04:36:07,517
OTHER THINGS I'D LIKE TO SEE IS 

6109
04:36:07,517 --> 04:36:13,056
DON'T TAKE ALTERNATIVE DEVICES 

6110
04:36:13,056 --> 04:36:14,757
AWAY FROM AUTISTIC PEOPLE IF 

6111
04:36:14,757 --> 04:36:17,427
THEY NEED THEM BECAUSE IT WILL 

6112
04:36:17,427 --> 04:36:19,028
HELP COMMUNICATE THEM IF THEY 

6113
04:36:19,028 --> 04:36:24,067
GET THEM TAKE N  AWAY IT'S WORS 

6114
04:36:24,067 --> 04:36:25,568
FOR THEIR MENTAL HEALTH AND I 

6115
04:36:25,568 --> 04:36:27,570
WANT TO SEE MORE FUNDING FOR 

6116
04:36:27,570 --> 04:36:28,705
MENTAL HEALTH.

6117
04:36:28,705 --> 04:36:33,009
THREE YEARS AGO THE LAST 

6118
04:36:33,009 --> 04:36:34,010
HOSPITALIZATION I'VE HAD AND 

6119
04:36:34,010 --> 04:36:36,646
I'VE HAD A FEW FOR SUICIDE TEAMS

6120
04:36:36,646 --> 04:36:40,216
AND THE PLACE WAS SUMMIT RIDGE 

6121
04:36:40,216 --> 04:36:42,318
IN LAWRENCEVILLE, GEORGIA.

6122
04:36:42,318 --> 04:36:43,086
DO NOT SEND ANYBODY THERE 

6123
04:36:43,086 --> 04:36:44,721
BECAUSE IT WAS THE WORSE PLACE 

6124
04:36:44,721 --> 04:36:46,122
I'VE EVER BEEN TO.

6125
04:36:46,122 --> 04:36:48,291
I THOUGHT I WAS NEVER GOING TO 

6126
04:36:48,291 --> 04:36:48,758
GET OUT.

6127
04:36:48,758 --> 04:36:51,227
I FELT THREATENED.

6128
04:36:51,227 --> 04:36:52,996
THERE WAS FIGHTING AND PEEING ON

6129
04:36:52,996 --> 04:36:55,365
CHAIRS AND THE FLOOR.

6130
04:36:55,365 --> 04:36:57,400
IT WAS A REALLY DISGUSTING PLIS 

6131
04:36:57,400 --> 04:36:59,936
AND I THINK IF THERE WAS MORE 

6132
04:36:59,936 --> 04:37:02,605
FUNDING MORE MENTAL HEALTH IN 

6133
04:37:02,605 --> 04:37:06,376
GENERAL IN THE MENTAL HEALTH 

6134
04:37:06,376 --> 04:37:13,349
HOSPITALS THEN MAYBE SUMMIT 

6135
04:37:13,349 --> 04:37:14,884
RIDGE WON'T BE SO BAD AND I FEEL

6136
04:37:14,884 --> 04:37:16,519
LIKE WE NEED MORE MENTAL HEALTH 

6137
04:37:16,519 --> 04:37:20,556
FUNDING IN GENERAL SO PLACES 

6138
04:37:20,556 --> 04:37:23,493
LIKE SUMMIT RIDGE CAN GET BETTER

6139
04:37:23,493 --> 04:37:25,762
AND I AGREE WITH WHAT EVERYBODY 

6140
04:37:25,762 --> 04:37:27,897
ELSE WAS SAYING WAS WE NEED 

6141
04:37:27,897 --> 04:37:29,165
SPECIFIC RESOURCES FOR AUTISTIC 

6142
04:37:29,165 --> 04:37:30,633
PEOPLE TO DEAL WITH SUICIDE.

6143
04:37:30,633 --> 04:37:36,305
YEAH, THANK YOU.

6144
04:37:36,305 --> 04:37:39,175
>> THANK YOU.

6145
04:37:39,175 --> 04:37:40,376
IAN NEUMAIER.

6146
04:37:40,376 --> 04:37:43,813
>> I DON'T HAVE MUCH TO
ADD AND 

6147
04:37:43,813 --> 04:37:44,947
AMPLIFYING EVERYTHING THE 

6148
04:37:44,947 --> 04:37:46,115
PREVIOUS SPEAKER MENTIONED AND 

6149
04:37:46,115 --> 04:37:48,785
SOMETHING THAT RESONATED IN 

6150
04:37:48,785 --> 04:37:51,621
MANDATING TRAINING FOR FIRST 

6151
04:37:51,621 --> 04:37:53,389
RESPONDERS AND EMERGENCY AND 

6152
04:37:53,389 --> 04:37:55,058
MEDICAL PROFESSIONALS.

6153
04:37:55,058 --> 04:37:58,094
I THINK THAT'S CRUCIALLY 

6154
04:37:58,094 --> 04:37:58,761
IMPORTANT.

6155
04:37:58,761 --> 04:38:01,631
THE ABSENCE RESULTS IN AN UNTOLD

6156
04:38:01,631 --> 04:38:03,633
NUMBER OF VIOLENT INTERACTIONS 

6157
04:38:03,633 --> 04:38:08,905
POLICE AND CIVILIANS NOT TO 

6158
04:38:08,905 --> 04:38:17,547
MENTION DEATHS OF COURSE.

6159
04:38:17,547 --> 04:38:24,053
>> THANK YOU.

6160
04:38:24,053 --> 04:38:24,387
MO

6161
04:38:24,387 --> 04:38:24,654
MORENIKE.

6162
04:38:24,654 --> 04:38:27,023
>> I THINK IT NEEDS TO BE 

6163
04:38:27,023 --> 04:38:28,858
PRACTICAL AND SOLUTION BASED AND

6164
04:38:28,858 --> 04:38:29,425
ADDRESS THE SITUATION THAT 

6165
04:38:29,425 --> 04:38:34,130
PEOPLE ARE DEALING WITH.

6166
04:38:34,130 --> 04:38:42,905
IS IT ANXIETY OR SENSORY 

6167
04:38:42,905 --> 04:38:43,673
WHATEIS 

6168
04:38:43,673 --> 04:38:43,940
HAPPENING.

6169
04:38:43,940 --> 04:38:45,708
A LOT OF US HAVE CONNECTED TO US

6170
04:38:45,708 --> 04:38:47,176
SO THE WELL BEING OF THOSE 

6171
04:38:47,176 --> 04:38:50,346
AROUND US AND FAMILY AT LARGE 

6172
04:38:50,346 --> 04:38:53,282
IT'S A MODEL THEY TAKE IN EARLY 

6173
04:38:53,282 --> 04:38:56,319
CHILDHOOD WITH THE INTEGRATED 

6174
04:38:56,319 --> 04:38:58,421
FAMILY SERVICE PLAN IS ONE THAT 

6175
04:38:58,421 --> 04:38:59,055
SHOULD BE CONSIDERED CROSS THE 

6176
04:38:59,055 --> 04:39:02,625
LIFE SPAN.

6177
04:39:02,625 --> 04:39:04,327
THE MENTAL HEALTH NEEDS TO BE 

6178
04:39:04,327 --> 04:39:06,629
MORE INTERSECTIONAL TO ADDRESS 

6179
04:39:06,629 --> 04:39:08,931
ISSUES THAT'S CULTURALLY 

6180
04:39:08,931 --> 04:39:10,600
COMPETENT AND ADDRESS THE OTHER 

6181
04:39:10,600 --> 04:39:13,970
PART OF A PERSON BECAUSE WE'RE 

6182
04:39:13,970 --> 04:39:18,407
NOT JUST ONE DIMENSIONAL AND 

6183
04:39:18,407 --> 04:39:18,741
NON-PUNITIVE.

6184
04:39:18,741 --> 04:39:23,112
PEOPLE CALLING THE POLICE NOT AN

6185
04:39:23,112 --> 04:39:23,346
OPTION.

6186
04:39:23,346 --> 04:39:23,980
I'M NOT CALLING THE POLICE ON MY

6187
04:39:23,980 --> 04:39:24,180
CHILD.

6188
04:39:24,180 --> 04:39:27,483
I DON'T CARE IF THEY'RE HITTING 

6189
04:39:27,483 --> 04:39:27,650
ME.

6190
04:39:27,650 --> 04:39:29,085
NEITHER ONE OF US MIGHT MAKE IT.

6191
04:39:29,085 --> 04:39:34,791
THAT'S IN THE GOING HA  TO 

6192
04:39:34,791 --> 04:39:35,491
HAPPEN AND PEOPLE DON'T 

6193
04:39:35,491 --> 04:39:37,093
UNDERSTAND THE NUANCES OF 

6194
04:39:37,093 --> 04:39:38,427
DISABILITY AND YOU CAN HAVE RISK

6195
04:39:38,427 --> 04:39:41,497
OF CHILD PROTECTIVE SERVICES I'M

6196
04:39:41,497 --> 04:39:42,131
SPEAKING TO DISRUPT OPPOSED TO 

6197
04:39:42,131 --> 04:39:44,066
SUPPORT.

6198
04:39:44,066 --> 04:39:45,935
IT NEEDS TO BE AFFORDABLE AND 

6199
04:39:45,935 --> 04:39:47,970
ACCESSIBLE AND FLEXIBLE AND I 

6200
04:39:47,970 --> 04:39:50,540
THINK THEY NEED TO BE 

6201
04:39:50,540 --> 04:39:50,873
PREVENTATIVE.

6202
04:39:50,873 --> 04:39:53,910
IT SHOULD NOT BE WHEN A PERSON'S

6203
04:39:53,910 --> 04:39:55,344
IN SEVERE CRISIS AND PEOPLE HAVE

6204
04:39:55,344 --> 04:40:01,017
INCREASED TO THE POINT WHERE NOW

6205
04:40:01,017 --> 04:40:06,622
THERE'S CONSTANT AGGRESSION OR 

6206
04:40:06,622 --> 04:40:12,895
UNREST AND SO FORTH AND YOU HAVE

6207
04:40:12,895 --> 04:40:13,796
NO CHOICE THE COUNTY CRISIS 

6208
04:40:13,796 --> 04:40:14,597
TEAM.

6209
04:40:14,597 --> 04:40:17,166
YOU SHOULD BE ABLE TO RECEIVE 

6210
04:40:17,166 --> 04:40:22,205
HELP BEFORE IT GETS TO THAT 

6211
04:40:22,205 --> 04:40:22,572
POINT.

6212
04:40:22,572 --> 04:40:22,972
UPP

6213
04:40:22,972 --> 04:40:25,942
UPP

6214
04:40:25,942 --> 04:40:27,577
UPPER MODELS FOR EXAMPLE HIV 

6215
04:40:27,577 --> 04:40:29,445
WRAP-AROUND CARE AND HOW THEY'RE

6216
04:40:29,445 --> 04:40:30,513
ADDRESSING A PERSON ACROSS THE 

6217
04:40:30,513 --> 04:40:31,814
LIFE SPAN AND THEIR FAMILIES AND

6218
04:40:31,814 --> 04:40:34,617
WE NEED TO DO SOME OF THAT.

6219
04:40:34,617 --> 04:40:39,622
THANK YOU.

6220
04:40:39,622 --> 04:40:39,956
>> THANK YOU.

6221
04:40:39,956 --> 04:40:41,691
ANGIE.

6222
04:40:41,691 --> 04:40:43,893
>> I THINK WE NEED TO
FIRST OF 

6223
04:40:43,893 --> 04:40:45,661
ALL ACKNOWLEDGE PEOPLE LIKE MY 

6224
04:40:45,661 --> 04:40:47,997
SON ARE NOT ABLE TO GET THE 

6225
04:40:47,997 --> 04:40:49,532
SERVICES THEY NEED BECAUSE OUR 

6226
04:40:49,532 --> 04:40:51,834
CURRENT SYSTEM DOES NOT KNOW HOW

6227
04:40:51,834 --> 04:40:53,269
TO SAFELY SUPPORT PEOPLE WITH 

6228
04:40:53,269 --> 04:40:54,604
DISRUPTIVE BEHAVIOR LIKE 

6229
04:40:54,604 --> 04:40:59,575
AGGRESSION.

6230
04:40:59,575 --> 04:41:02,078
WE NEED TO RECOGNIZE IT'S 

6231
04:41:02,078 --> 04:41:03,913
RELATED TO DISABILITY AND THEY 

6232
04:41:03,913 --> 04:41:05,848
SHOULD NOT BE CRIMINALIZED LIKE 

6233
04:41:05,848 --> 04:41:07,216
POLICE OR EXCESSIVE SCHOOL 

6234
04:41:07,216 --> 04:41:07,516
SUSPENSIONS.

6235
04:41:07,516 --> 04:41:09,352
WE THESE TO DIG DEEP TO MAKE 

6236
04:41:09,352 --> 04:41:10,953
SURE WE'RE MEETING EVERYONE'S 

6237
04:41:10,953 --> 04:41:13,055
CRITICAL NEEDS SUCH AS SENSORY 

6238
04:41:13,055 --> 04:41:14,457
AND COMMUNICATION AND MEDICAL 

6239
04:41:14,457 --> 04:41:18,127
AMONG OTHERS AND WE NEED TO RELY

6240
04:41:18,127 --> 04:41:20,663
ON THE AUTISTIC COMMUNITY TO 

6241
04:41:20,663 --> 04:41:22,098
BETTER UNDERSTAND HOW TO MEET 

6242
04:41:22,098 --> 04:41:23,366
THE NEEDS AND NEED MORE 

6243
04:41:23,366 --> 04:41:23,633
RESEARCH.

6244
04:41:23,633 --> 04:41:25,234
OUR FAMILY HAS WORKED SO HARD 

6245
04:41:25,234 --> 04:41:27,103
TRYING TO ACCOMMODATE ALL MY 

6246
04:41:27,103 --> 04:41:30,640
SON'S NEEDS AND WE HAVE HAD 

6247
04:41:30,640 --> 04:41:32,775
SUCCESS FINDING HOW TO SUPPORT 

6248
04:41:32,775 --> 04:41:34,377
HIS LOWER LEVELS OF AGITATION.

6249
04:41:34,377 --> 04:41:37,647
WHEN IT APPEARS TO BE SUDDEN AND

6250
04:41:37,647 --> 04:41:39,248
INTENTION RESPONSE WITH 

6251
04:41:39,248 --> 04:41:40,349
AGGRESSION WITH NO OBVIOUS CAUSE

6252
04:41:40,349 --> 04:41:42,251
STILL PERSIST AND WE NEED MORE 

6253
04:41:42,251 --> 04:41:43,319
RESEARCH TO UNDERSTAND WHAT 

6254
04:41:43,319 --> 04:41:45,821
SEEMS TO BE A PHYSIOLOGICAL 

6255
04:41:45,821 --> 04:41:47,623
RESPONSE FOR SOME PEOPLE AND 

6256
04:41:47,623 --> 04:41:50,426
UNDERSTAND HARD WORK AND WE NEED

6257
04:41:50,426 --> 04:41:52,028
TO GET PROPER SUPPORT AND 

6258
04:41:52,028 --> 04:41:53,496
TRAINING AND RESOURCES TO 

6259
04:41:53,496 --> 04:41:55,431
ADDRESS SUPPORT WORKERS AND 

6260
04:41:55,431 --> 04:41:56,699
EDUCATORS AND THERAPISTS TO KNOW

6261
04:41:56,699 --> 04:41:59,302
HOW TO SAFELY AND EFFECTIVELY 

6262
04:41:59,302 --> 04:42:00,136
HELP.

6263
04:42:00,136 --> 04:42:02,438
I GO BACK INTO MY OTHER NAL 

6264
04:42:02,438 --> 04:42:04,206
THOUGHT WE NEED TO ACKNOWLEDGE 

6265
04:42:04,206 --> 04:42:07,743
THE MENTAL HEALTH NEEDS SO 

6266
04:42:07,743 --> 04:42:10,012
PEOPLE LIKE MYSELF SEE THE NEEDS

6267
04:42:10,012 --> 04:42:11,447
NOT MET AND I WOULD LOVE TO TELL

6268
04:42:11,447 --> 04:42:13,783
YOU ABOUT MY SON'S WONDERFUL 

6269
04:42:13,783 --> 04:42:16,385
QUALITIES BECAUSE THERE'S MANY 

6270
04:42:16,385 --> 04:42:17,453
BUT SINCE IT'S A MENTAL HEALTH 

6271
04:42:17,453 --> 04:42:22,625
FORUM I HAD TO FOCUS ON HIS 

6272
04:42:22,625 --> 04:42:24,727
HARDEST MOMENTS AND HIS 

6273
04:42:24,727 --> 04:42:25,928
OPPORTUNITIES IN LIFE ARE 

6274
04:42:25,928 --> 04:42:28,331
LIMITED BY HIS HARDEST MOMENTS 

6275
04:42:28,331 --> 04:42:33,035
AND COMMUNICATION AND RECREATION

6276
04:42:33,035 --> 04:42:39,675
AND WORK SKILLS ARE ALL HINDERED

6277
04:42:39,675 --> 04:42:42,712
BY UNMET NEEDS AND HE'S A GREAT 

6278
04:42:42,712 --> 04:42:45,548
GUY AND I CAN'T OVER STATE HOW 

6279
04:42:45,548 --> 04:42:46,482
DIRE HE IS.

6280
04:42:46,482 --> 04:42:47,683
THANK YOU.

6281
04:42:47,683 --> 04:42:50,619
>> THANK YOU FOR SHARING
YOUR 

6282
04:42:50,619 --> 04:42:57,793
PERSONAL AND PROFESSIONAL 

6283
04:42:57,793 --> 04:42:58,094
PERSPECTIVE.

6284
04:42:58,094 --> 04:42:58,694
WE'LL TAKE QUESTIONS FROM THE 

6285
04:42:58,694 --> 04:43:02,898
COMMITTEE.

6286
04:43:02,898 --> 04:43:03,099
DENA.

6287
04:43:03,099 --> 04:43:03,666
>> THANK YOU TO EVERYONE.

6288
04:43:03,666 --> 04:43:06,469
I THINK YOUR COMMENTS AND 

6289
04:43:06,469 --> 04:43:12,108
SHARING TODAY WERE REALLY INFORM

6290
04:43:12,108 --> 04:43:18,848
TICK AND -- INFORMATIVE AND 

6291
04:43:18,848 --> 04:43:21,050
EMOTIONALLY DEMANDING.

6292
04:43:21,050 --> 04:43:22,752
I WANT TO SAY I THINK THE THING 

6293
04:43:22,752 --> 04:43:24,987
WE'RE NOT TALKING ABOUT TODAY IS

6294
04:43:24,987 --> 04:43:26,655
THE LACK OF RESEARCH AROUND 

6295
04:43:26,655 --> 04:43:29,692
PEOPLE WHO SURVIVED.

6296
04:43:29,692 --> 04:43:31,327
WE AREN'T LOOKING AT RESILIENCE 

6297
04:43:31,327 --> 04:43:34,930
FACTORS IN THIS COMMUNITY AND 

6298
04:43:34,930 --> 04:43:37,400
HOW PEOPLE GET PAST THESE 

6299
04:43:37,400 --> 04:43:39,769
TRAUMAS AND PAST THE MENTAL 

6300
04:43:39,769 --> 04:43:42,538
HEALTH CRISIS TO REACH SOME 

6301
04:43:42,538 --> 04:43:43,873
LEVEL OF PERSONAL SATISFACTION.

6302
04:43:43,873 --> 04:43:47,276
I THINK UNTIL WE DECODE HOW THEY

6303
04:43:47,276 --> 04:43:49,445
DO THINGS TO INFORM MENTAL 

6304
04:43:49,445 --> 04:43:50,613
HEALTH SERVICES WE'RE LIMITING 

6305
04:43:50,613 --> 04:43:52,515
OURSELVES.

6306
04:43:52,515 --> 04:43:56,385
I'D ALSO LIKE TO DISCUSS FROM MY

6307
04:43:56,385 --> 04:43:58,621
PERSONAL EXPERIENCE THE MEDICAL 

6308
04:43:58,621 --> 04:44:02,525
TRAUMA THAT AUTISTIC PEOPLE 

6309
04:44:02,525 --> 04:44:04,460
ENDURE WHEN THEY PRESENT WITH 

6310
04:44:04,460 --> 04:44:06,629
MENTAL HEALTH ISSUES BUT THEY'RE

6311
04:44:06,629 --> 04:44:08,631
A MANIFESTATION THAT NEVER 

6312
04:44:08,631 --> 04:44:09,598
IDENTIFIED AUTISM.

6313
04:44:09,598 --> 04:44:11,067
I MYSELF PRESENTED WITH 

6314
04:44:11,067 --> 04:44:12,902
DEPRESSION AND ANXIETY THAT WERE

6315
04:44:12,902 --> 04:44:15,805
ACTUALLY A RESULT OF MONTHS OF 

6316
04:44:15,805 --> 04:44:16,972
EARLY CHILDHOOD SLEEP 

6317
04:44:16,972 --> 04:44:22,845
DEPRIVATION FROM MY KIDS AND I 

6318
04:44:22,845 --> 04:44:24,747
DIDN'T KNOW I WAS AUTISTIC 

6319
04:44:24,747 --> 04:44:27,283
THOUGH I HAD A CHILD ON THE 

6320
04:44:27,283 --> 04:44:28,951
SPECTRUM AND THEY DIAGNOSED ME 

6321
04:44:28,951 --> 04:44:32,288
WITH BIPOLAR DISORDER WHICH COST

6322
04:44:32,288 --> 04:44:37,226
ME BASICALLY TEN YEARS OF MY 

6323
04:44:37,226 --> 04:44:42,064
WHOLE LIFE MY 30s WAS BEING OVER

6324
04:44:42,064 --> 04:44:44,467
MEDICATED OR UNDER MEDICATED.

6325
04:44:44,467 --> 04:44:47,770
IT FRUSTRATES ME IN MY FIELD OF 

6326
04:44:47,770 --> 04:44:51,574
SOCIAL WORK WE'RE NOT TRADING 

6327
04:44:51,574 --> 04:44:54,610
SOCIAL WORKERS HOW TO RED FLAG 

6328
04:44:54,610 --> 04:44:56,112
THE POSSIBILITY SO A PERSON CAN 

6329
04:44:56,112 --> 04:44:57,446
BE EVALUATE THE BEFORE THEY'RE 

6330
04:44:57,446 --> 04:45:01,917
MEDICALLY MALTREATED.

6331
04:45:01,917 --> 04:45:04,587
THOSE ARE MY TWO TALKING POINTS 

6332
04:45:04,587 --> 04:45:06,822
BUT I APPRECIATE EVERYBODY'S 

6333
04:45:06,822 --> 04:45:08,624
INPUT AND HEAVY TOPIC BUT 

6334
04:45:08,624 --> 04:45:09,825
CRITICALLY NEEDED.

6335
04:45:09,825 --> 04:45:12,628
>> I BRIEFLY SAW HARI'S
HAND UP 

6336
04:45:12,628 --> 04:45:15,364
BUT I THINK IT WENT DOWN.

6337
04:45:15,364 --> 04:45:23,172
AND NEXT SCOTT.

6338
04:45:23,172 --> 04:45:25,141
>> THANK YOU, DR. DANIELS
AND 

6339
04:45:25,141 --> 04:45:27,977
FOR THE GREAT SESSION COMMUNITY 

6340
04:45:27,977 --> 04:45:29,612
SPECIFICS ON MENTAL HEALTH.

6341
04:45:29,612 --> 04:45:32,148
IT RESONATED WITH ME AND AGREE 

6342
04:45:32,148 --> 04:45:34,383
WITH DENA A LOT OF THIS IS 

6343
04:45:34,383 --> 04:45:35,217
STRESSFUL TO TALK ABOUT AT TIMES

6344
04:45:35,217 --> 04:45:40,756
BUT SO IMPORTANT.

6345
04:45:40,756 --> 04:45:44,727
THERE'S IMPACT ON EMPLOYMENT 

6346
04:45:44,727 --> 04:45:49,965
IT'S A MAJOR IMPACTER IN FOLKS 

6347
04:45:49,965 --> 04:45:51,534
MAINTAINING ADVANCE IN THEIR 

6348
04:45:51,534 --> 04:45:51,767
CAREERS.

6349
04:45:51,767 --> 04:45:54,336
I'M ALSO GLAD THAT YOU ALL 

6350
04:45:54,336 --> 04:45:56,438
BROUGHT UP THAT WE NEED TO HAVE 

6351
04:45:56,438 --> 04:45:57,873
ADJUSTMENTS TO HOW WE THINK 

6352
04:45:57,873 --> 04:46:01,510
ABOUT ASSESSMENTS AND TESTING 

6353
04:46:01,510 --> 04:46:04,146
AND THINGS LIKE THE ADOLF 

6354
04:46:04,146 --> 04:46:05,147
TESTING SYSTEM AND ONE 

6355
04:46:05,147 --> 04:46:08,017
ADDITIONAL FACTOR FOR THE ADOS 

6356
04:46:08,017 --> 04:46:10,352
IS THEY OFTEN DON'T PICK UP 

6357
04:46:10,352 --> 04:46:12,354
ADULTS WHO ADAPTED OR 

6358
04:46:12,354 --> 04:46:13,789
COMPENSATED OR MASK, ETCETERA.

6359
04:46:13,789 --> 04:46:17,092
I'M AN EXAMPLE OF THAT WHERE IF 

6360
04:46:17,092 --> 04:46:21,497
I WAS ON A STUDY I MAY NOT SHOW 

6361
04:46:21,497 --> 04:46:26,936
UP AS SCIENTIFIC ASA  -- AS ADOS

6362
04:46:26,936 --> 04:46:29,905
AND I HAVE ALL THE TRAITS.

6363
04:46:29,905 --> 04:46:31,974
I DON'T KNOW IF THIS IS A 

6364
04:46:31,974 --> 04:46:37,112
COMPLEX QUESTION TO ASK ABOUT 

6365
04:46:37,112 --> 04:46:38,147
THE ROLE OF TECHNOLOGY IN 

6366
04:46:38,147 --> 04:46:41,850
HELPING ADDRESS THE CHALLENGES 

6367
04:46:41,850 --> 04:46:43,652
I'VE EXPERIENCED AND I THINK 

6368
04:46:43,652 --> 04:46:45,754
THAT'S SOME OF THE SOLUTION I 

6369
04:46:45,754 --> 04:46:48,757
THINK FOR HAVING IMPROVEMENTS 

6370
04:46:48,757 --> 04:46:51,560
AND ADVANCEMENTS AND SOME IS 

6371
04:46:51,560 --> 04:46:52,595
EMERGING TECH FROM A GOOD 

6372
04:46:52,595 --> 04:46:56,699
STANDPOINT OF HOW IT CAN BE 

6373
04:46:56,699 --> 04:46:57,733
ADDRESSING MENTAL HEALTH AND 

6374
04:46:57,733 --> 04:46:58,234
WELL BEING.

6375
04:46:58,234 --> 04:47:02,438
I WONDERED IF FOCUS HAVE MORE 

6376
04:47:02,438 --> 04:47:08,510
THOUGHTS ON INNOVATIVE 

6377
04:47:08,510 --> 04:47:09,845
TECHNOLOGY INCLUDING MOBILE 

6378
04:47:09,845 --> 04:47:17,052
TECHNOLOGY HELPFUL FOR 

6379
04:47:17,052 --> 04:47:17,920
EMPOWERING MENTAL HEALTH 

6380
04:47:17,920 --> 04:47:18,187
SUPPORTS.

6381
04:47:18,187 --> 04:47:24,593
>> ANY RESPONSE FROM THE
GROUP?

6382
04:47:24,593 --> 04:47:24,793
LISA.

6383
04:47:24,793 --> 04:47:27,997
>> THE COMMENT ON PEOPLE
WHO 

6384
04:47:27,997 --> 04:47:28,197
STAY.

6385
04:47:28,197 --> 04:47:29,365
I THINK A LOT OF IT HAS TO DO 

6386
04:47:29,365 --> 04:47:35,170
WITH REASONS FOR LIVING.

6387
04:47:35,170 --> 04:47:37,473
I WOULDN'T LEAVE THOUGH I WANTED

6388
04:47:37,473 --> 04:47:39,408
TO BECAUSE OF MY KIDS.

6389
04:47:39,408 --> 04:47:46,282
OTHER AUTISTIC ADULTS REASONS 

6390
04:47:46,282 --> 04:47:49,151
FOR LIVING THEY'RE BASED AROUND 

6391
04:47:49,151 --> 04:47:50,486
SENSE OF PURPOSE AND AUTISTIC 

6392
04:47:50,486 --> 04:47:52,888
ADULTS MAY NOT HAVE A SENSE OF 

6393
04:47:52,888 --> 04:47:53,088
SELF.

6394
04:47:53,088 --> 04:47:55,157
IF YOU CAN BUILD A LIST AND 

6395
04:47:55,157 --> 04:47:58,027
COULD BE ONLINE OR PAPER AND 

6396
04:47:58,027 --> 04:47:59,828
HAVE THAT REASON FOR LIVING LIST

6397
04:47:59,828 --> 04:48:05,301
WITH THEM WHEN THEY GET INTO THE

6398
04:48:05,301 --> 04:48:15,811
CRISIS AND WHY THEY WANT TO LIVE

6399
04:48:15,811 --> 04:48:17,079
HOPEFULLY THAT ANSWERS YOUR 

6400
04:48:17,079 --> 04:48:17,346
QUESTION.

6401
04:48:17,346 --> 04:48:19,181
>> ANYONE ELSE ON THE
PANEL WANT

6402
04:48:19,181 --> 04:48:29,158
TO RESPOND?

6403
04:48:29,158 --> 04:48:30,959
YOU CAN JUST SPEAK UP.

6404
04:48:30,959 --> 04:48:33,429
>> CAN YOU HEAR ME, THIS
IS IAN.

6405
04:48:33,429 --> 04:48:39,001
I THINK SCOTT ASKED A GREAT 

6406
04:48:39,001 --> 04:48:42,037
QUESTION.

6407
04:48:42,037 --> 04:48:43,439
THERE'S A GREAT DEAL OF 

6408
04:48:43,439 --> 04:48:45,674
OPPORTUNITY WITH THE 

6409
04:48:45,674 --> 04:48:46,875
ACCESSIBILITY OR UBIQUITY OF 

6410
04:48:46,875 --> 04:48:50,312
THINGS LIKE GENERATIVE A.I. 

6411
04:48:50,312 --> 04:48:52,681
HOWEVER, THEY COULD IN MISUSED 

6412
04:48:52,681 --> 04:48:55,984
BUT IF WE'RE LOOK FOR 

6413
04:48:55,984 --> 04:48:57,720
PROGRESSIVE POSITIVE USES I CAN 

6414
04:48:57,720 --> 04:49:04,293
THINK IN MY OWN CONTEXT DECADES 

6415
04:49:04,293 --> 04:49:07,129
AGO STUDYING PEOPLE'S BEHAVIOR, 

6416
04:49:07,129 --> 04:49:08,597
LEARN HOW TO MODEL IT AN TEST 

6417
04:49:08,597 --> 04:49:10,332
THINGS OUT.

6418
04:49:10,332 --> 04:49:12,234
I CAN THINK OF A GENERATIVE 

6419
04:49:12,234 --> 04:49:14,603
SYSTEM THAT MAY BE DEVELOPED 

6420
04:49:14,603 --> 04:49:18,040
PARTICULARLY FOR THE PURPOSES OF

6421
04:49:18,040 --> 04:49:19,775
HELPING PEOPLE PREPARE AND 

6422
04:49:19,775 --> 04:49:21,243
ANTICIPATE UPCOMING INTERACTIONS

6423
04:49:21,243 --> 04:49:24,580
AND THINGS LIKE THAT.

6424
04:49:24,580 --> 04:49:26,148
THAT'S SOMETHING WITHIN THE 

6425
04:49:26,148 --> 04:49:26,749
GRASP OF TECHNOLOGY WE HAVE 

6426
04:49:26,749 --> 04:49:36,925
RIGHT NOW.

6427
04:49:38,227 --> 04:49:42,464
UP TERMS OF APPS AVAILABLE HAD 

6428
04:49:42,464 --> 04:49:45,601
MY TIME IN COLLEGE BEEN 

6429
04:49:45,601 --> 04:49:47,269
ACCOMPANIED BY SOME ASSISTIVE 

6430
04:49:47,269 --> 04:49:52,007
TECHNOLOGY CONSULTATION WHERE 

6431
04:49:52,007 --> 04:49:58,614
THERE WAS A SUITE OF 

6432
04:49:58,614 --> 04:50:00,983
TECHNOLOGICAL APPLICATIONS FOUND

6433
04:50:00,983 --> 04:50:03,018
TO BE USEFUL FOR AUTISTIC FOLKS 

6434
04:50:03,018 --> 04:50:05,187
WOULD HAVE BEEN GRET.

6435
04:50:05,187 --> 04:50:07,256
MAY HAVE INCLUDED SPEECHIFY 

6436
04:50:07,256 --> 04:50:09,158
WHICH RIGHT NOW IS SUPER 

6437
04:50:09,158 --> 04:50:13,529
EXPENSIVE.

6438
04:50:13,529 --> 04:50:20,135
THE ABILITY TO HAVE INFORMATION 

6439
04:50:20,135 --> 04:50:23,105
IB DIFFERENT FORMATS AN IT'S A 

6440
04:50:23,105 --> 04:50:27,743
MATTER OF ORGANIZING THE THINGS 

6441
04:50:27,743 --> 04:50:33,916
TO BE AVAILABLE TO STUDENTS ON 

6442
04:50:33,916 --> 04:50:38,187
DEMAND.

6443
04:50:38,187 --> 04:50:40,589
>> HARI SAID THE ONLY TWO 

6444
04:50:40,589 --> 04:50:41,723
SOLUTIONS BEING OFFERED RIGHT 

6445
04:50:41,723 --> 04:50:44,426
NOW FOR BEHAVIOR LIKE AGGRESSION

6446
04:50:44,426 --> 04:50:47,930
AND SIB AS THEY RELATE TO MENTAL

6447
04:50:47,930 --> 04:50:50,799
HEALTH ARE EITHER PSYCHO TROPIC 

6448
04:50:50,799 --> 04:50:58,607
MEDICATIONS OR BEHAVIOR THERAPY.

6449
04:50:58,607 --> 04:51:01,877
THE BOTTOM LINE IS NEITHER 

6450
04:51:01,877 --> 04:51:02,110
WORKED.

6451
04:51:02,110 --> 04:51:02,611
>> THANK YOU.

6452
04:51:02,611 --> 04:51:12,888
ANY COMMENTS FROM THE PANEL?

6453
04:51:12,888 --> 04:51:13,088
LISA.

6454
04:51:13,088 --> 04:51:16,191
>> BEING HONEST IN WHAT'S
OUT ON

6455
04:51:16,191 --> 04:51:17,793
THE INTERNET IS YOU CAN SEARCH 

6456
04:51:17,793 --> 04:51:18,994
FOR DIFFERENT WAYS TO DIE AND 

6457
04:51:18,994 --> 04:51:21,063
WHEN YOU SEARCH FOR WAYS TO 

6458
04:51:21,063 --> 04:51:23,098
LIVE, AUTISTIC PEOPLE ARE NOT 

6459
04:51:23,098 --> 04:51:26,635
INCLUDED ON THOSE NATIONAL 

6460
04:51:26,635 --> 04:51:37,112
SUICIDE PREVENTION WEBSITES.

6461
04:51:42,351 --> 04:51:42,484
JENNY.

6462
04:51:42,484 --> 04:51:44,052
>> THANK YOU FOR THE
DISCUSSION 

6463
04:51:44,052 --> 04:51:47,589
AND EVERYONE WHO SHARED STORIES.

6464
04:51:47,589 --> 04:51:53,161
MY QUESTION IS ABOUT AUTISTIC 

6465
04:51:53,161 --> 04:51:56,598
PEOPLE WHO MAY BE NEED SUPPORT 

6466
04:51:56,598 --> 04:51:57,266
OR EMOTIONAL PROBLEMS TO SEEM 

6467
04:51:57,266 --> 04:51:59,301
QUA THEY'RE LOOKING FOR.

6468
04:51:59,301 --> 04:52:03,605
DO THEY NOT KNOW WHAT HELP THEIR

6469
04:52:03,605 --> 04:52:05,007
SEEKING AND MAY BE STRUGGLING 

6470
04:52:05,007 --> 04:52:15,484
WITH HOW TO IDENTIFY THEIR 

6471
04:52:16,852 --> 04:52:18,253
PROBLEMS.

6472
04:52:18,253 --> 04:52:23,625
CAN ANYONE ON THE PANEL ADDRESS 

6473
04:52:23,625 --> 04:52:23,825
THAT?

6474
04:52:23,825 --> 04:52:27,696
>> THE SUICIDE PREVENTION
WORK 

6475
04:52:27,696 --> 04:52:30,465
GROUP TALKS ABOUT JUST THAT.

6476
04:52:30,465 --> 04:52:33,635
WE HAVE MORE RESOURCES AVAILABLE

6477
04:52:33,635 --> 04:52:35,637
AND WORKING ON THE FIFTH AND 

6478
04:52:35,637 --> 04:52:37,339
TALK ABOUT THE PRESENTATION OF 

6479
04:52:37,339 --> 04:52:39,041
AUTISTIC PEOPLE IN A CRISIS AND 

6480
04:52:39,041 --> 04:52:44,313
EVERYTHING'S HAPPENING ON THE 

6481
04:52:44,313 --> 04:52:46,481
INSIDE.

6482
04:52:46,481 --> 04:52:49,251
WE HAVE SUICIDE PEOPLE THAT 

6483
04:52:49,251 --> 04:52:51,453
COVER EVERY THING THAT CAN 

6484
04:52:51,453 --> 04:52:52,754
HAPPEN WITH AGE AUTISTIC PERSON 

6485
04:52:52,754 --> 04:52:56,091
IN CRISIS AND WHAT TO DO AND 

6486
04:52:56,091 --> 04:52:58,527
EMERGING RESEARCH FINDINGS.

6487
04:52:58,527 --> 04:53:02,397
ALL AVAILABLE AND DOWNLOADABLE 

6488
04:53:02,397 --> 04:53:09,638
ON WWW.AUTISMCRISISSUPPORT.com.

6489
04:53:09,638 --> 04:53:14,376
>> THANK YOU.

6490
04:53:14,376 --> 04:53:14,710
MO

6491
04:53:14,710 --> 04:53:14,977
MORENIKE.

6492
04:53:14,977 --> 04:53:16,912
>> THAT'S A SITUATION
EIGHT OF 

6493
04:53:16,912 --> 04:53:19,548
US FACE WHERE YOU DON'T KNOW HO 

6494
04:53:19,548 --> 04:53:25,187
YOU FEEL OR WHAT IS NEEDED AND 

6495
04:53:25,187 --> 04:53:31,693
AS MENTIONED THEY NOT PICK UP 

6496
04:53:31,693 --> 04:53:32,828
THE WAY WE FEEL.

6497
04:53:32,828 --> 04:53:35,197
I'M GRATEFUL WE HAVE GROUPS SUCH

6498
04:53:35,197 --> 04:53:40,736
AS ASPIRE TAKING A NUMBER OF 

6499
04:53:40,736 --> 04:53:44,339
EXISTING TOOLS AND WORKING 

6500
04:53:44,339 --> 04:53:45,207
COLLABORATIVELY WITH RESEARCHERS

6501
04:53:45,207 --> 04:53:49,111
AND NON-AUTISTIC AND AUTISTIC 

6502
04:53:49,111 --> 04:53:50,646
RESEARCHERS AND OTHER LEADERS TO

6503
04:53:50,646 --> 04:53:57,185
MAKE VERSIONS TO MODIFY THESE 

6504
04:53:57,185 --> 04:54:04,259
TOOLS, THESE TO MAKE THEM MORE 

6505
04:54:04,259 --> 04:54:04,526
VALUABLE.

6506
04:54:04,526 --> 04:54:06,395
I'D LIKE TO SEE MORE WORK 

6507
04:54:06,395 --> 04:54:11,500
HAPPENING WITH OTHER 

6508
04:54:11,500 --> 04:54:15,370
INSTITUTIONS DOING THE SAME.

6509
04:54:15,370 --> 04:54:17,773
IN WORKING WITH THE IV CENTER 

6510
04:54:17,773 --> 04:54:23,812
AND GLOBAL IDD WORK IN GENERAL 

6511
04:54:23,812 --> 04:54:29,084
AND THEN THERE'S THE WORK AT THE

6512
04:54:29,084 --> 04:54:31,953
AUTISM INSTITUTE.

6513
04:54:31,953 --> 04:54:35,157
THERE'S A POLICY AND A SOCIAL 

6514
04:54:35,157 --> 04:54:44,166
DYNAMICS OF NETWORKS LOOKING AT 

6515
04:54:44,166 --> 04:54:47,669
OTHER PIECES BECAUSE SOMETIMES 

6516
04:54:47,669 --> 04:54:49,538
IT'S THE ONES AROUND US TO PICK 

6517
04:54:49,538 --> 04:55:00,082
UP AND MAY MANIFEST IN MISS -- 

6518
04:55:02,684 --> 04:55:03,585
PHYSIOLOGICAL TEAM.

6519
04:55:03,585 --> 04:55:05,987
>> WHAT CAN WE SAY ABOUT 

6520
04:55:05,987 --> 04:55:10,826
ADVANCES WITH PHYSIOLOGIC 

6521
04:55:10,826 --> 04:55:12,527
SENSORS AND WEARABLES IN TERM OF

6522
04:55:12,527 --> 04:55:15,764
THESE BEHAVIORS.

6523
04:55:15,764 --> 04:55:16,565
>> WE'RE USING THAT
CURRENTLY IN

6524
04:55:16,565 --> 04:55:26,808
OUR RESEARCH.

6525
04:55:27,743 --> 04:55:28,777
WE LOOKED AT AGGRESSION AND 

6526
04:55:28,777 --> 04:55:31,046
SELF-INJURY AND ONE OF OUR 

6527
04:55:31,046 --> 04:55:35,584
PROJECTS IS WEARING 

6528
04:55:35,584 --> 04:55:38,353
PHYSIOLOGICAL SENSORS FOR TWO 

6529
04:55:38,353 --> 04:55:42,524
WEEKS AND TRIGGERED BY CHANGES 

6530
04:55:42,524 --> 04:55:46,628
IN PHYSIO AND HALF THE TIME ARE 

6531
04:55:46,628 --> 04:55:55,437
TRIGGER AND HALF THE TIME NOT 

6532
04:55:55,437 --> 04:56:00,308
AND YOU CAN IDENTIFY SIGNS OF 

6533
04:56:00,308 --> 04:56:05,046
DISTRESS AND MARKERS OF INJURY.

6534
04:56:05,046 --> 04:56:07,115
THERE'S MORE WORK TO MAKE IT 

6535
04:56:07,115 --> 04:56:08,250
SPECIFIC AND ACCURATE ENOUGH BUT

6536
04:56:08,250 --> 04:56:13,455
THERE'S MOVEMENT IN THE AREA AND

6537
04:56:13,455 --> 04:56:17,926
THE CHILD WOULD BE DOING IT WITH

6538
04:56:17,926 --> 04:56:22,097
MEASURES IN PHYSIOLOGY MORE 

6539
04:56:22,097 --> 04:56:23,565
WIDELY AVAILABLE AND CHEAPER.

6540
04:56:23,565 --> 04:56:25,367
>> I THINK HARI HAD HIS
HAND UP 

6541
04:56:25,367 --> 04:56:26,067
AND THAT WILL BE THE LAST 

6542
04:56:26,067 --> 04:56:36,411
QUESTION.

6543
04:56:36,411 --> 04:56:40,682
>> HE ASKS THAT
SELF-INJURY 

6544
04:56:40,682 --> 04:56:42,250
BEHAVIORS COULD BE A FORM OF 

6545
04:56:42,250 --> 04:56:43,752
SUICIDAL THOUGHTS ESPECIALLY WHO

6546
04:56:43,752 --> 04:56:50,525
DON'T HAVE THE MOTOR SKILLS OR 

6547
04:56:50,525 --> 04:56:50,959
BO

6548
04:56:50,959 --> 04:56:53,161
BO

6549
04:56:53,161 --> 04:56:56,064
BODY REGULATION TO ATTEMPT?

6550
04:56:56,064 --> 04:56:57,532
>> IT'S INTERESTING THAT
WAS 

6551
04:56:57,532 --> 04:57:01,002
MENTIONED BECAUSE I LOOKED AT 

6552
04:57:01,002 --> 04:57:05,807
SOME OF THE LITERATURE WHERE TAY

6553
04:57:05,807 --> 04:57:16,251
TALK ABOUT LOWER SUICIDE 

6554
04:57:19,387 --> 04:57:23,892
BEHAVIOR AND PROPERTY 

6555
04:57:23,892 --> 04:57:24,192
DESTRUCTION.

6556
04:57:24,192 --> 04:57:26,161
HOW DO KNOW IT'S A FORM OF 

6557
04:57:26,161 --> 04:57:31,833
COMMUNICATION AN I THINK ABOUT 

6558
04:57:31,833 --> 04:57:34,903
MYSELF WITH THE DIAGNOSIS OF 

6559
04:57:34,903 --> 04:57:43,144
EARLY ONSET DEMENTIA SOMETIMES 

6560
04:57:43,144 --> 04:57:50,619
I'LL NOT BE ABLE TO PERFORM 

6561
04:57:50,619 --> 04:57:52,921
SPECIFIC FUNCTIONS OR CAN'T 

6562
04:57:52,921 --> 04:57:58,660
RECALL MY CHILD'S NAME AND I 

6563
04:57:58,660 --> 04:58:05,467
KNOW HOW FRUSTRATED AND A LOT OF

6564
04:58:05,467 --> 04:58:07,802
TIMES PEOPLE SAY ANGER CAN 

6565
04:58:07,802 --> 04:58:11,172
REPRESS SADNESS.

6566
04:58:11,172 --> 04:58:15,543
FOR SOME SELF-INJURIOUS BEHAVIOR

6567
04:58:15,543 --> 04:58:18,179
I'VE ENGAGED IN HAS THAT SLANT 

6568
04:58:18,179 --> 04:58:22,617
IN IT AND I DON'T THINK I'M 

6569
04:58:22,617 --> 04:58:22,817
ALONE.

6570
04:58:22,817 --> 04:58:24,853
>> AND LISA.

6571
04:58:24,853 --> 04:58:26,655
>> I'VE HEARD FROM A LOT
OF 

6572
04:58:26,655 --> 04:58:28,623
AUTISTIC ADULTS THAT 

6573
04:58:28,623 --> 04:58:29,824
SELF-INJURIOUS BEHAVIOR CAN ALSO

6574
04:58:29,824 --> 04:58:32,494
BE SUICIDE PREVENTION IN THAT IT

6575
04:58:32,494 --> 04:58:37,732
CAN REDUCE OVERWHELMING EMOTIONS

6576
04:58:37,732 --> 04:58:41,937
THAT MAY CAUSE THEM TO DIE BY 

6577
04:58:41,937 --> 04:58:44,439
SUICIDE AND THAT SELF-INJURIOUS 

6578
04:58:44,439 --> 04:58:45,907
BEHAVIOR CAN REDUCE THOSE 

6579
04:58:45,907 --> 04:58:48,576
EMOTIONS TO THE POINT WHERE THEY

6580
04:58:48,576 --> 04:58:50,578
CAN START REGULATING INSTEAD.

6581
04:58:50,578 --> 04:58:51,346
>> THANK YOU SO MUCH.

6582
04:58:51,346 --> 04:58:54,215
THIS HAS BEEN A REALLY 

6583
04:58:54,215 --> 04:58:54,983
ENLIGHTENING DISCUSSION.

6584
04:58:54,983 --> 04:58:59,955
WE APPRECIATE OUR PANEL EFFISTS 

6585
04:58:59,955 --> 04:59:00,221
QUESTIONS.

6586
04:59:00,221 --> 04:59:02,691
I'LL TURN IT BACK TO DR. GORDON.

6587
04:59:02,691 --> 04:59:04,292
>> I WANT TO ADD MY THANKS
TO 

6588
04:59:04,292 --> 04:59:06,428
THE PANELISTS VIRTUAL AND IN 

6589
04:59:06,428 --> 04:59:07,195
ATTENDANCE.

6590
04:59:07,195 --> 04:59:08,830
I'LL ASK FOR THE NEXT SET 

6591
04:59:08,830 --> 04:59:11,733
PANELISTS TO COME UP WE'LL SWAP 

6592
04:59:11,733 --> 04:59:13,802
OUT THE FOLKS AT THE HEAD OF THE

6593
04:59:13,802 --> 04:59:14,002
TABLE.

6594
04:59:14,002 --> 04:59:16,404
WHILE I DO THAT I'LL INVITE OUR 

6595
04:59:16,404 --> 04:59:18,106
COMMITTEE MEMBERS IN PERSON TO 

6596
04:59:18,106 --> 04:59:19,474
STAND UP AND STRETCH BUT ASK YOU

6597
04:59:19,474 --> 04:59:20,141
NOT TO LEAVE.

6598
04:59:20,141 --> 04:59:22,677
WE'RE GOING TO TAKE A MOMENT'S 

6599
04:59:22,677 --> 04:59:22,877
BREAK.

6600
04:59:22,877 --> 04:59:25,180
IF YOU NEED TO USE THE RESTROOM 

6601
04:59:25,180 --> 04:59:27,649
OR GET A GLASS OF WATER BY ALL 

6602
04:59:27,649 --> 04:59:29,484
MEANS DO TO BUT WE'LL TRY TO GO 

6603
04:59:29,484 --> 04:59:31,820
TO THE NEXT PANEL SO IF YOU 

6604
04:59:31,820 --> 04:59:32,454
DON'T HAVE TO, DON'T LEAVE THE 

6605
04:59:32,454 --> 04:59:42,564
ROOM.

6606
05:00:28,510 --> 05:00:28,643
OKAY.

6607
05:00:28,643 --> 05:00:31,746
IT'S MY PLEASURE TO CONTINUE THE

6608
05:00:31,746 --> 05:00:34,149
FOCUS ON THE MENTAL HEALTH NEEDS

6609
05:00:34,149 --> 05:00:38,486
OF AUTISTIC POPULATION AND THE 

6610
05:00:38,486 --> 05:00:40,588
FINAL SESSION FOCUSES ON 

6611
05:00:40,588 --> 05:00:42,023
ADDRESSING THE NEEDS.

6612
05:00:42,023 --> 05:00:45,794
WE HAVE THREE PANELISTS.

6613
05:00:45,794 --> 05:00:47,128
TWO VIRTUALLY.

6614
05:00:47,128 --> 05:00:57,672
ONE IS STACY NONNEMACHER AND ONE

6615
05:01:01,109 --> 05:01:04,979
JOINING IN PERSON, JONAH 

6616
05:01:04,979 --> 05:01:06,614
CUNNINGHAM.

6617
05:01:06,614 --> 05:01:17,125
HOPEFULLY DR. NONNEMACHER CAN 

6618
05:01:21,996 --> 05:01:23,765
JOIN US AND TALK ABOUT THE LINK 

6619
05:01:23,765 --> 05:01:26,301
CENTER A NATIONAL RESOURCE 

6620
05:01:26,301 --> 05:01:27,502
CENTER FUNDED BY THE 

6621
05:01:27,502 --> 05:01:28,336
ADMINISTRATION FOR COMMUNITY 

6622
05:01:28,336 --> 05:01:32,373
LIVING OF COURSE ONE OF THE 

6623
05:01:32,373 --> 05:01:38,613
MEMBER AGENCIES OF THE IACC.

6624
05:01:38,613 --> 05:01:40,849
DR. NONNEMACHER.

6625
05:01:40,849 --> 05:01:41,082
WELCOME.

6626
05:01:41,082 --> 05:01:42,984
>> HI THERE, GOOD
AFTERNOON, 

6627
05:01:42,984 --> 05:01:43,751
EVERYONE.

6628
05:01:43,751 --> 05:01:45,253
FIRST I'D LIKE TO THANK FOR THE 

6629
05:01:45,253 --> 05:01:47,088
INVITE TO TALK ABOUT WHAT OTHERS

6630
05:01:47,088 --> 05:01:49,124
BEFORE ME HAVE HIGHLIGHTED AS 

6631
05:01:49,124 --> 05:01:58,466
IMPORTANT TOPIC IN THIS FIELD.

6632
05:01:58,466 --> 05:01:59,734
I'M HONORED TO TALK WITH THE 

6633
05:01:59,734 --> 05:02:02,570
LINK CENTER A FIVE-YEAR GRANT 

6634
05:02:02,570 --> 05:02:06,641
AWARDED IN SEPTEMBER OF 2022 

6635
05:02:06,641 --> 05:02:10,612
THROUGH THE ADMINISTRATION OF 

6636
05:02:10,612 --> 05:02:20,922
COMMUNITY LIVING.

6637
05:02:22,757 --> 05:02:26,928
WHY IS THIS GRANT BE SUPPORT AND

6638
05:02:26,928 --> 05:02:28,530
SUPPORTING PEOPLE WITH 

6639
05:02:28,530 --> 05:02:33,234
CO-OCCURRING COGNITIVE AND 

6640
05:02:33,234 --> 05:02:33,768
MENTAL HEALTH CONDITIONS 

6641
05:02:33,768 --> 05:02:34,602
SUPPORTS ARE ON AN 

6642
05:02:34,602 --> 05:02:35,904
INDIVIDUALIZED INTEGRATED 

6643
05:02:35,904 --> 05:02:37,739
APPROACH THE PANEL BEFORE 

6644
05:02:37,739 --> 05:02:39,374
ELOQUENTLY TALKED ABOUT AND TO 

6645
05:02:39,374 --> 05:02:42,610
ME THAT MEANS SOMEONE SHOULD BE 

6646
05:02:42,610 --> 05:02:45,647
ABLE TO ACCESS BEHAVIORAL 

6647
05:02:45,647 --> 05:02:49,751
HEALTH, HABILITATIVE SERVICES 

6648
05:02:49,751 --> 05:02:50,418
AND PHYSICAL HEALTH SUPPORT 

6649
05:02:50,418 --> 05:02:52,253
DEPENDING ON WHAT THEY NEED.

6650
05:02:52,253 --> 05:02:53,454
SYSTEMS ARE NOT SET UP TO 

6651
05:02:53,454 --> 05:02:54,422
SUPPORT THIS AND SUPPORTERS MAY 

6652
05:02:54,422 --> 05:03:01,462
IN THE HAVE THE SKILLS.

6653
05:03:01,462 --> 05:03:04,832
WHAT THIS SLIDE IS SAYING AND 

6654
05:03:04,832 --> 05:03:05,934
THE PREVIOUS PANEL HIGHLIGHTED 

6655
05:03:05,934 --> 05:03:07,769
IS WE KNOW WE HAVE TO BUILD CAST

6656
05:03:07,769 --> 05:03:12,307
OF THE WORKFORCE AND SYSTEMS TO 

6657
05:03:12,307 --> 05:03:15,610
SUPPORT PEOPLES WHOSE NEEDS 

6658
05:03:15,610 --> 05:03:17,178
TOUCH MULTIPLE SYSTEMS AND NEED 

6659
05:03:17,178 --> 05:03:18,213
A CONTINUUM OF COMMUNITY 

6660
05:03:18,213 --> 05:03:21,349
SERVICES THAT FOCUSES ON 

6661
05:03:21,349 --> 05:03:22,617
PREVENTION AND NOT JUST CRISIS 

6662
05:03:22,617 --> 05:03:31,826
FOR PEOPLE.

6663
05:03:31,826 --> 05:03:34,662
WE KNOW WE NEED TO LOOK AT 

6664
05:03:34,662 --> 05:03:37,165
FLAWED POLICY AND SYSTEMS NEED 

6665
05:03:37,165 --> 05:03:39,100
TO COLLABORATE AND NOT JUST 

6666
05:03:39,100 --> 05:03:41,603
PLACEMENTS OR ONE DIMENSIONAL 

6667
05:03:41,603 --> 05:03:42,604
ANSWERS.

6668
05:03:42,604 --> 05:03:44,138
AND MOST IMPORTANTLY ALL THIS 

6669
05:03:44,138 --> 05:03:47,809
NEEDS TO BE INFORMED AND GUIDED 

6670
05:03:47,809 --> 05:03:49,944
BY PEOPLE WITH LIVED 

6671
05:03:49,944 --> 05:03:50,245
EXPERIENCES.

6672
05:03:50,245 --> 05:03:51,479
ALL THESE PIECES AND ELEMENTS 

6673
05:03:51,479 --> 05:03:52,847
ARE AT THE CORE OF THE GRANT.

6674
05:03:52,847 --> 05:03:54,816
LET ME TAKE A STEP BACK.

6675
05:03:54,816 --> 05:04:05,293
WE'LL GO TO THE NEXT SLIDE.

6676
05:04:06,894 --> 05:04:12,634
THIS WAS AWARDED TO THE NATIONAL

6677
05:04:12,634 --> 05:04:15,136
ASSOCIATION FOR DUAL DIAGNOSIS 

6678
05:04:15,136 --> 05:04:19,874
AND NASDDDS AND THEY'VE BEEN 

6679
05:04:19,874 --> 05:04:22,543
SUPPORTING WAYS IN STATE TO 

6680
05:04:22,543 --> 05:04:24,579
SUPPORT PEOPLE WITH CO-OCCURRING

6681
05:04:24,579 --> 05:04:25,546
AND MENTAL HEALTH SUPPORT NEEDS 

6682
05:04:25,546 --> 05:04:28,049
AND RECOGNIZING THE POWER AND 

6683
05:04:28,049 --> 05:04:30,285
PARTNERSHIPS TO TACKLE THIS NEED

6684
05:04:30,285 --> 05:04:32,120
WE CONVENED A ROUNDTABLE 

6685
05:04:32,120 --> 05:04:33,454
DISCUSSION WHERE PROMISING 

6686
05:04:33,454 --> 05:04:36,124
PRACTICES WERE IDENTIFIED.

6687
05:04:36,124 --> 05:04:38,459
PRACTICES LIKE OPPORTUNITIES TO 

6688
05:04:38,459 --> 05:04:39,494
TRANSCEND STRUCTURAL STILL PIPE 

6689
05:04:39,494 --> 05:04:43,464
OR MISALIGNED INCENTIVES FOR 

6690
05:04:43,464 --> 05:04:44,766
PROVIDERS, CLINICAL CAPACITY 

6691
05:04:44,766 --> 05:04:50,371
BUILDING PARTICULARLY FOR THE 

6692
05:04:50,371 --> 05:04:51,139
DSP WORKFORCE DEVELOPMENT 

6693
05:04:51,139 --> 05:04:52,006
SERVICE DESIGN INNOVATION 

6694
05:04:52,006 --> 05:04:54,108
OPPORTUNITIES AND IN STATE AND 

6695
05:04:54,108 --> 05:04:55,643
HOW DO WE THINGS DIFFERENTLY AND

6696
05:04:55,643 --> 05:05:01,382
ENSURING A LENS ON CULTURAL AND 

6697
05:05:01,382 --> 05:05:02,016
LINGUISTICALLY APPROPRIATENESS 

6698
05:05:02,016 --> 05:05:03,151
TO ENSURE MEANINGFUL ACCESS 

6699
05:05:03,151 --> 05:05:06,788
ACROSS SYSTEMS AND TO THE POINT 

6700
05:05:06,788 --> 05:05:08,690
MADE EARLIER NOT JUST WHAT'S 

6701
05:05:08,690 --> 05:05:10,625
AVAILABLE BUT IS IT ACCESSIBLE.

6702
05:05:10,625 --> 05:05:12,126
SO THESE WERE THE MOTIVATION FOR

6703
05:05:12,126 --> 05:05:17,565
THE PARTNERSHIP WITH THIS GRANT 

6704
05:05:17,565 --> 05:05:24,939
AND WE'VE ALSO CAPITALIZED ON 

6705
05:05:24,939 --> 05:05:26,441
THE ENTITY TO ADDRESS THE NEED 

6706
05:05:26,441 --> 05:05:27,408
OUTSIDE THE GRANT.

6707
05:05:27,408 --> 05:05:29,744
WE EMBARKED ON A TWO-YEAR 

6708
05:05:29,744 --> 05:05:31,946
NATIONAL CLINICAL AND SYSTEM 

6709
05:05:31,946 --> 05:05:32,947
CAPACITY BUILDING EFFORT THAT'S 

6710
05:05:32,947 --> 05:05:43,391
OFFERED TO MEMBER STATES.

6711
05:05:45,693 --> 05:05:49,297
THIS INCLUDES MENTAL HEALTH AND 

6712
05:05:49,297 --> 05:05:51,699
TRANSLATED CBT AND DBT FOR 

6713
05:05:51,699 --> 05:05:52,367
PEOPLE WITH COGNITIVE 

6714
05:05:52,367 --> 05:05:53,901
LIMITATIONS BUT MAY BENEFIT FROM

6715
05:05:53,901 --> 05:05:54,902
THE TREATMENTS.

6716
05:05:54,902 --> 05:05:57,605
I'M HARDENED TO HEAR EVERYBODY 

6717
05:05:57,605 --> 05:05:58,606
TALKING ABOUT THINGS LIKE THE 

6718
05:05:58,606 --> 05:06:00,641
NEED FOR CAPACITY BUILDING AND 

6719
05:06:00,641 --> 05:06:05,313
THE NEED FOR TRAUMA-INFORMED 

6720
05:06:05,313 --> 05:06:05,680
APPROACH.

6721
05:06:05,680 --> 05:06:06,848
THE NEED TO ADAPT MENTAL HEALTH 

6722
05:06:06,848 --> 05:06:08,015
TREATMENT FOR PEOPLE WITH IDD 

6723
05:06:08,015 --> 05:06:18,426
AND MENTAL HEALTH NEEDS.

6724
05:06:21,062 --> 05:06:22,997
IN ADDITION THERE'S OTHERS THAT 

6725
05:06:22,997 --> 05:06:24,799
FOCUS ON EQUITY AND INCLUSION 

6726
05:06:24,799 --> 05:06:26,634
AND OUR QUALITY ARM OF THIS 

6727
05:06:26,634 --> 05:06:29,570
WORK.

6728
05:06:29,570 --> 05:06:32,473
SO WE ALSO HAVE SELF-ADVOCATES, 

6729
05:06:32,473 --> 05:06:34,075
AUTISTIC SELF-ADVOCACY NETWORKS 

6730
05:06:34,075 --> 05:06:35,676
AND NATIONAL ASSOCIATION OF 

6731
05:06:35,676 --> 05:06:38,279
STATE HEAD INJURY ADMINISTRATORS

6732
05:06:38,279 --> 05:06:40,081
AND COMMUNICATION FIRST AND 

6733
05:06:40,081 --> 05:06:46,020
NATIONAL FOR SERVICES AND THE 

6734
05:06:46,020 --> 05:06:47,155
SONORAN CENTER AND OHIO STATE 

6735
05:06:47,155 --> 05:06:52,126
UNIVERSITY'S MIDSUMMER CENTER.

6736
05:06:52,126 --> 05:06:54,395
THE LINK CENTER IS FOCUSSED ON 

6737
05:06:54,395 --> 05:06:57,131
THREE PRIMARY GOALS.

6738
05:06:57,131 --> 05:07:00,802
THE FIRST IS LOOKING AT SYSTEMS 

6739
05:07:00,802 --> 05:07:02,336
CHANGE AND WHERE TO MAKE 

6740
05:07:02,336 --> 05:07:05,173
IMPROVEMENT IN POLICY AND 

6741
05:07:05,173 --> 05:07:12,180
SERVICE DESIGN AND COORDINATION.

6742
05:07:12,180 --> 05:07:14,015
THE SECOND IN DIRECT SUPPORT 

6743
05:07:14,015 --> 05:07:15,883
PROFESSIONALS, CLINICAL 

6744
05:07:15,883 --> 05:07:16,751
PROFESSIONALS AND GIVING THEM 

6745
05:07:16,751 --> 05:07:19,120
THE TOOLS AND SUPPORTS THEY NEED

6746
05:07:19,120 --> 05:07:22,156
TO SUPPORT PEOPLE WHO HAVE 

6747
05:07:22,156 --> 05:07:22,657
CO-OCCURRING DIAGNOSES.

6748
05:07:22,657 --> 05:07:26,127
AND LAST BUT NOT LEAST WE'RE 

6749
05:07:26,127 --> 05:07:28,729
FEELING AS IF WE TACKLE THOSE 

6750
05:07:28,729 --> 05:07:31,766
TWO GOALS SYSTEM CHANGE AND 

6751
05:07:31,766 --> 05:07:32,467
BUILDING CAPACITY.

6752
05:07:32,467 --> 05:07:35,570
THIS WILL OPEN UP ACCESS TO 

6753
05:07:35,570 --> 05:07:37,004
PEOPLE AND NOT JUST AS LISA 

6754
05:07:37,004 --> 05:07:40,274
APTLY PUT IT AGAIN, NOT 

6755
05:07:40,274 --> 05:07:41,175
AVAILABLE SERVICE BUT ACCESSIBLE

6756
05:07:41,175 --> 05:07:47,348
SERVICES.

6757
05:07:47,348 --> 05:07:53,154
SO IN ORDER TO REACH THESE GOALS

6758
05:07:53,154 --> 05:07:56,524
WHILE ALSO MAINTAINING 

6759
05:07:56,524 --> 05:07:57,158
DIVERSITY, EQUITY AND INCLUSION 

6760
05:07:57,158 --> 05:08:05,399
AND QUALITY THROUGHOUT AND WE 

6761
05:08:05,399 --> 05:08:07,235
ARE NOT THE ONLY ONES THINKING 

6762
05:08:07,235 --> 05:08:11,806
ABOUT THIS AND AS ALL IT 

6763
05:08:11,806 --> 05:08:14,542
STRAI -- 

6764
05:08:14,542 --> 05:08:16,177
ILLUSTRATED IT AND WE'LL HOST 

6765
05:08:16,177 --> 05:08:17,278
QUARTERLY LEARNING COMMUNITIES 

6766
05:08:17,278 --> 05:08:19,614
TO BRING PEOPLE TOGETHER TO TALK

6767
05:08:19,614 --> 05:08:21,315
ABOUT SPECIFIC TOPICS THAT WE 

6768
05:08:21,315 --> 05:08:24,085
FEEL ARE RELEVANT IN THIS FIELD,

6769
05:08:24,085 --> 05:08:31,192
IN THIS WORK.

6770
05:08:31,192 --> 05:08:32,994
ALSO SHARING WHAT WE THINK ABOUT

6771
05:08:32,994 --> 05:08:34,629
AND GETTING FEEDBACK FROM THE 

6772
05:08:34,629 --> 05:08:38,599
COMMUNITIES AND USING THE 

6773
05:08:38,599 --> 05:08:40,368
COMMUNITIES WHO HAVE EXPERIENCED

6774
05:08:40,368 --> 05:08:42,069
AN EXPERTISE TO HELP US INFORM 

6775
05:08:42,069 --> 05:08:43,237
OTHER GRANT ACTIVITIES SHARING 

6776
05:08:43,237 --> 05:08:43,804
RESOURCES, INFORMATION AND 

6777
05:08:43,804 --> 05:08:53,881
TRAINING.

6778
05:08:53,881 --> 05:08:55,082
AND THE IDENTIFYING AND 

6779
05:08:55,082 --> 05:08:56,350
EMBEDDING OF THE TRAINING TO ADD

6780
05:08:56,350 --> 05:08:57,818
TO A NATIONAL REPOSITORY FOR THE

6781
05:08:57,818 --> 05:09:05,826
LINK CENTER WEBSITE.

6782
05:09:05,826 --> 05:09:11,966
PRIOR I SPENT 16 YEARS I WAS 

6783
05:09:11,966 --> 05:09:14,135
DIRECTOR OF THE PROGRAMS AND I 

6784
05:09:14,135 --> 05:09:16,704
SPENT TIME HELPING PEOPLE 

6785
05:09:16,704 --> 05:09:21,876
NAVIGATE THE SYSTEMS AND HELPING

6786
05:09:21,876 --> 05:09:24,178
PEOPLE UNDERSTAND WHY PEOPLE 

6787
05:09:24,178 --> 05:09:26,147
WERE SHOWING UP THE WAY THEY 

6788
05:09:26,147 --> 05:09:28,849
SHOWED UP AND HAVING A NATIONAL 

6789
05:09:28,849 --> 05:09:29,917
REPOSITORY PLACE WHERE ALL 

6790
05:09:29,917 --> 05:09:31,852
RESOURCES AND INFORMATION AND 

6791
05:09:31,852 --> 05:09:33,688
TRAINING IS HOUSED WOULD HAVE 

6792
05:09:33,688 --> 05:09:35,957
BEEN AN AMAZING GIFT FOR 

6793
05:09:35,957 --> 05:09:39,060
SOMEBODY LIKE WHO IS WORKING IN 

6794
05:09:39,060 --> 05:09:40,561
THE FIELD WHO WAS TRYING TO 

6795
05:09:40,561 --> 05:09:43,297
FIGURE THESE THINGS OUT AND ALSO

6796
05:09:43,297 --> 05:09:45,900
TRYING TO FIND WHERE THOSE TOOLS

6797
05:09:45,900 --> 05:09:48,235
WERE TO HELP ME FIGURE THAT OUT.

6798
05:09:48,235 --> 05:09:50,204
SO THAT PARTICULAR THE LINK 

6799
05:09:50,204 --> 05:09:52,773
CENTER WEBSITE WE'RE LOOKING AT 

6800
05:09:52,773 --> 05:09:54,875
A WIDE AUDIENCE AND MAKING THIS 

6801
05:09:54,875 --> 05:09:56,877
AVAILABLE AND ACCESSIBLE FOR 

6802
05:09:56,877 --> 05:09:58,846
INDIVIDUALS AND FAMILIES AND 

6803
05:09:58,846 --> 05:10:01,549
OTHER SUPPORTERS LIKE DIRECT 

6804
05:10:01,549 --> 05:10:02,617
SUPPORT PROFESSIONALS AND OTHER 

6805
05:10:02,617 --> 05:10:04,986
CLINICAL PROFESSIONALS.

6806
05:10:04,986 --> 05:10:06,354
WE'RE REALLY HOPING THAT THROUGH

6807
05:10:06,354 --> 05:10:08,656
CURATING THE RESOURCES WE'LL BE 

6808
05:10:08,656 --> 05:10:10,224
ABLE TO PROVIDE A BETTER 

6809
05:10:10,224 --> 05:10:11,792
UNDERSTANDING OF WHAT THINGS ARE

6810
05:10:11,792 --> 05:10:14,428
OUT THERE AND SHOULD BE ELEVATED

6811
05:10:14,428 --> 05:10:17,531
AND TO ALSO ENCOURAGE THE 

6812
05:10:17,531 --> 05:10:21,802
TRANSLATION OF RESEARCH TO 

6813
05:10:21,802 --> 05:10:23,904
PRACTICE AND IDENTIFY WHERE THE 

6814
05:10:23,904 --> 05:10:25,640
GAPS ARE WE CAN POTENTIALLY 

6815
05:10:25,640 --> 05:10:26,641
ADDRESS THROUGH GRANT RESOURCE 

6816
05:10:26,641 --> 05:10:28,743
OR OTHER ACTIVITIES LIKE 

6817
05:10:28,743 --> 05:10:30,111
ENGAGING WITH THOSE EXPERT 

6818
05:10:30,111 --> 05:10:34,348
CONTRIBUTORS OR HOLDING THOSE 

6819
05:10:34,348 --> 05:10:34,849
SHARED LEARNING GROUPS.

6820
05:10:34,849 --> 05:10:36,784
SO WE HAVE A CONTINUOUS 

6821
05:10:36,784 --> 05:10:38,052
EVALUATION LOOP FOR ALL OUR 

6822
05:10:38,052 --> 05:10:40,421
EFFORTS AND THAT'S LED BY THE 

6823
05:10:40,421 --> 05:10:44,025
CENTER AT OSU BUT ABOVE ALL THE 

6824
05:10:44,025 --> 05:10:45,860
MOST IMPORTANT COMPONENT TO THE 

6825
05:10:45,860 --> 05:10:50,097
LINK CENTER IS THE ROLE OF OUR 

6826
05:10:50,097 --> 05:10:50,531
STEERING COMMITTEE.

6827
05:10:50,531 --> 05:10:53,634
OUR STEERING COMMITTEE IS MADE 

6828
05:10:53,634 --> 05:10:56,470
UP OF A GROUP OF 12 PASSION NAL 

6829
05:10:56,470 --> 05:10:57,505
PEOPLE WHO REPRESENT DIVERSE 

6830
05:10:57,505 --> 05:10:59,140
EXPERIENCE AND TASKED TO GUIDE 

6831
05:10:59,140 --> 05:11:01,142
AND DIRECT THE WORK OF THE GRANT

6832
05:11:01,142 --> 05:11:03,277
AND ALREADY HAVE REALLY SHOWN UP

6833
05:11:03,277 --> 05:11:05,179
AND WE'VE LEARNED SO MUCH FROM 

6834
05:11:05,179 --> 05:11:08,182
THEM.

6835
05:11:08,182 --> 05:11:09,050
ADDITIONALLY TO SOME EARLIER 

6836
05:11:09,050 --> 05:11:10,851
COMMENTS WE'RE WORKING WITH 

6837
05:11:10,851 --> 05:11:12,520
SAMHSA THROUGH THE GRANT TO 

6838
05:11:12,520 --> 05:11:16,157
INCREASE AWARENESS OF 9-8-8 

6839
05:11:16,157 --> 05:11:17,158
CRISIS SERVICES IN THE COMMUNITY

6840
05:11:17,158 --> 05:11:19,827
AND IT'S A TWO-HANDED CLAP.

6841
05:11:19,827 --> 05:11:21,962
WE'RE ALSO WORKING TO INCREASE 

6842
05:11:21,962 --> 05:11:25,366
THE SKILLS OF LIFE LINE WORKERS 

6843
05:11:25,366 --> 05:11:27,435
TO BETTER RESPOND TO AND DRUTH 

6844
05:11:27,435 --> 05:11:30,004
PEOPLE TO APPROPRIATE SERVICES 

6845
05:11:30,004 --> 05:11:30,604
AND SUPPORTS.

6846
05:11:30,604 --> 05:11:31,839
SO WHILE AMBITIOUS THE WORK 

6847
05:11:31,839 --> 05:11:34,341
THROUGH THIS GRANT IS CRITICAL 

6848
05:11:34,341 --> 05:11:35,910
TO OUR FIELD AS OTHERS BEFORE ME

6849
05:11:35,910 --> 05:11:37,478
HAVE HIGHLIGHTED AND WE KNOW 

6850
05:11:37,478 --> 05:11:39,513
THAT A GREAT DEAL OF TIME, 

6851
05:11:39,513 --> 05:11:42,249
ENERGY AND RESOURCES IN STATES 

6852
05:11:42,249 --> 05:11:44,251
ARE ALLOCATED TO FINDING BETTER 

6853
05:11:44,251 --> 05:11:45,953
WAYS TO SUPPORT PEOPLE WITH 

6854
05:11:45,953 --> 05:11:46,587
CO-OCCURRING NEEDS AND BELIEVE 

6855
05:11:46,587 --> 05:11:49,423
THE MORE WE CAN STRUCTURE OR 

6856
05:11:49,423 --> 05:11:52,393
SYSTEMS THE MORE WE CAN BUILD 

6857
05:11:52,393 --> 05:11:53,294
CAPACITY THE BETTER WE'RE ABLE 

6858
05:11:53,294 --> 05:11:58,632
TO GET PEOPLE WHAT THEY NEED 

6859
05:11:58,632 --> 05:12:00,334
WHEN THEY NEED IT.

6860
05:12:00,334 --> 05:12:03,003
THIS IS WHERE YOU CAN REACH US 

6861
05:12:03,003 --> 05:12:05,873
AT THE LINK CENTER AND THIS IS 

6862
05:12:05,873 --> 05:12:08,442
LETTING YOU KNOW OUR WEBSITE 

6863
05:12:08,442 --> 05:12:11,479
WILL BE COMING SOON SO KEEP 

6864
05:12:11,479 --> 05:12:14,115
YOU'RE EYE OUT FOR THAT AND 

6865
05:12:14,115 --> 05:12:16,083
ANOTHER ACKNOWLEDGEMENT TO THE 

6866
05:12:16,083 --> 05:12:17,184
FUNDER THE ADMINISTRATION OF 

6867
05:12:17,184 --> 05:12:18,319
COMMUNITY LIVING FOR THEIR 

6868
05:12:18,319 --> 05:12:20,054
VISION AND LEADERSHIP IN WHAT WE

6869
05:12:20,054 --> 05:12:21,422
HOPE WILL BE SUCH AN AMAZING 

6870
05:12:21,422 --> 05:12:25,559
ASSET TO THE FIELD.

6871
05:12:25,559 --> 05:12:28,529
THANK YOU FOR HAVING ME TODAY.

6872
05:12:28,529 --> 05:12:31,098
>> THANK YOU.

6873
05:12:31,098 --> 05:12:33,367
NEXT WE HAVE DR. PINEALS THE 

6874
05:12:33,367 --> 05:12:40,174
MEDICAL AND FORENSIC ADVISER FOR

6875
05:12:40,174 --> 05:12:41,976
THE CLINICAL DIRECTOR OF THE 

6876
05:12:41,976 --> 05:12:43,277
PSYCHIATRY AND THE PROGRAM OF 

6877
05:12:43,277 --> 05:12:47,681
PSYCHIATRY LAW AND ETHIC AT THE 

6878
05:12:47,681 --> 05:12:50,384
UNIVERSITY OF MICHIGAN.

6879
05:12:50,384 --> 05:12:50,985
>> THANK YOU SO MUCH FIRST
OF 

6880
05:12:50,985 --> 05:12:52,586
ALL FOR INVITING ME TO SPEAK AND

6881
05:12:52,586 --> 05:12:56,457
I'M EXCITED I'M FOLLOWING MY 

6882
05:12:56,457 --> 05:12:57,725
COLLEAGUE AND ALL THE EXCELLENT 

6883
05:12:57,725 --> 05:12:58,492
SPEAKERS THAT CAME BEFORE.

6884
05:12:58,492 --> 05:13:02,630
MANY OF MY REMARKS WILL RESONATE

6885
05:13:02,630 --> 05:13:08,803
WITH YOUR COMMITTEE.

6886
05:13:08,803 --> 05:13:11,872
I'M SPEAKING ON BEHALF OF THE 

6887
05:13:11,872 --> 05:13:13,974
STATE NATIONAL PROGRAM DIRECTORS

6888
05:13:13,974 --> 05:13:18,345
REPRESENTING OVER $41 BILLION 

6889
05:13:18,345 --> 05:13:22,550
SERVING 7.5 MILLION ANNUALLY IN 

6890
05:13:22,550 --> 05:13:26,086
ALL STATES AND DISTRICT OF 

6891
05:13:26,086 --> 05:13:28,789
COLUMBIA AND AFFILIATED WITH 

6892
05:13:28,789 --> 05:13:34,795
STATE HOSPITAL SERVE 147,000 PER

6893
05:13:34,795 --> 05:13:40,568
YEAR.

6894
05:13:40,568 --> 05:13:41,135
WE KNOW PEOPLE WITH AUTISM 

6895
05:13:41,135 --> 05:13:45,606
SPECTRUM DISORDER CAN HAVE 

6896
05:13:45,606 --> 05:13:47,174
CO-OCCURRING MENTAL ILLNESSES 

6897
05:13:47,174 --> 05:13:49,310
THOUGH THE PREVALENCE RATES MAY 

6898
05:13:49,310 --> 05:13:49,577
BE HIGHER.

6899
05:13:49,577 --> 05:13:53,013
WE ALSO KNOW BEHAVIORS IS 

6900
05:13:53,013 --> 05:13:57,785
MANAGED OR INTERPRETED AS MENTAL

6901
05:13:57,785 --> 05:14:00,754
ILLNESS GETS INTERPRETED IS NOT 

6902
05:14:00,754 --> 05:14:04,258
ALWAYS IDEAL AS WE HEARD IN THE 

6903
05:14:04,258 --> 05:14:06,293
EXAMPLES BEFORE WITH PEOPLE WITH

6904
05:14:06,293 --> 05:14:07,228
LIVED EXPERIENCE.

6905
05:14:07,228 --> 05:14:08,696
THERE'S IMPORTANCE FOR INCREASED

6906
05:14:08,696 --> 05:14:09,330
UNDERSTANDING AND INDIVIDUAL 

6907
05:14:09,330 --> 05:14:11,065
NEEDS AND INCREASED RESOURCES TO

6908
05:14:11,065 --> 05:14:14,702
TREAT INDIVIDUALS ACROSS AND 

6909
05:14:14,702 --> 05:14:16,804
WITHIN SYSTEMS.

6910
05:14:16,804 --> 05:14:20,741
THERE'S BEEN A MYSTICAL GAP 

6911
05:14:20,741 --> 05:14:24,645
BETWEEN DEPARTMENTS OF MENTAL 

6912
05:14:24,645 --> 05:14:26,647
HEALTH AND DISABILITY AND FOR 

6913
05:14:26,647 --> 05:14:27,915
PERSONS WITH AUTISM SPECTRUM 

6914
05:14:27,915 --> 05:14:31,051
DISORDER INDIVIDUALS WITH ASD 

6915
05:14:31,051 --> 05:14:33,454
MAY NOT FIT NEATLY INTO EITHER 

6916
05:14:33,454 --> 05:14:34,722
SILOED AGENCIES.

6917
05:14:34,722 --> 05:14:37,057
THERE'S BEEN MANY SHIFTS ACROSS 

6918
05:14:37,057 --> 05:14:40,294
THE STATES IN HOW THINGS ARE 

6919
05:14:40,294 --> 05:14:41,295
ORGANIZED IN LARGE PART RELATED 

6920
05:14:41,295 --> 05:14:42,596
TO MEDICAID AND SPENDING FOR 

6921
05:14:42,596 --> 05:14:53,107
SERVICES IN THE PUBLIC SYSTEM.

6922
05:14:54,441 --> 05:15:04,919
WE KNOW THERE'S NOT ENOUGH STAFF

6923
05:15:08,489 --> 05:15:10,658
AND INDIVIDUALS OFTEN PLAYED IN 

6924
05:15:10,658 --> 05:15:12,092
MORE RESTRICTIVE SETTINGS THAN 

6925
05:15:12,092 --> 05:15:14,628
NECESSARY TO ADDRESS THEIR 

6926
05:15:14,628 --> 05:15:24,738
NEEDS.

6927
05:15:42,923 --> 05:15:44,058
THERE NEEDS TO BE MORE 

6928
05:15:44,058 --> 05:15:45,125
ENGAGEMENT BY THE SERVICE SYSTEM

6929
05:15:45,125 --> 05:15:46,427
SO FAMILIES CAN PARTICIPATE FOR 

6930
05:15:46,427 --> 05:15:49,296
YOUTH AND ADULTS.

6931
05:15:49,296 --> 05:15:50,564
THESE ARE JUST SOME OF THE 

6932
05:15:50,564 --> 05:15:51,532
THINGS I'VE IDENTIFIED.

6933
05:15:51,532 --> 05:15:54,268
WE ALSO KNOW THAT PEOPLE WITH 

6934
05:15:54,268 --> 05:15:55,836
CO-OCCURRING BEHAVIORAL HEALTH 

6935
05:15:55,836 --> 05:15:57,338
AND INTELLECTUAL DEVELOPMENT 

6936
05:15:57,338 --> 05:15:58,539
DISABILITY CONDITIONS STRUGGLE 

6937
05:15:58,539 --> 05:16:01,041
TO ACCESS INTEGRATIVE CARE TO 

6938
05:16:01,041 --> 05:16:02,042
MEET THEIR COMPLEX NEEDS.

6939
05:16:02,042 --> 05:16:05,279
AGAIN, PART IS RELATED TO 

6940
05:16:05,279 --> 05:16:07,481
FUNDING STRUCTURES AND SYSTEM 

6941
05:16:07,481 --> 05:16:08,916
STRUCTURE WHERE WE HAVE ON THE 

6942
05:16:08,916 --> 05:16:10,918
ONE SIDE OFTEN FEE FOR SERVICE 

6943
05:16:10,918 --> 05:16:14,621
TYPES OF ARRANGEMENTS WITH 

6944
05:16:14,621 --> 05:16:16,223
NARROW ELIGIBILITY CRITERIA AND 

6945
05:16:16,223 --> 05:16:18,625
MEDICAL NECESSITY CRITERIA THAT 

6946
05:16:18,625 --> 05:16:21,128
LIMIT ACCESS IN COVERAGE FOR 

6947
05:16:21,128 --> 05:16:22,529
BEHAVIORAL HEALTH CARE WITH 

6948
05:16:22,529 --> 05:16:26,633
PEOPLE WITH ADSD AND DEPARTMENTS

6949
05:16:26,633 --> 05:16:28,168
OF DEVELOPMENTAL DISABILITIES.

6950
05:16:28,168 --> 05:16:30,437
OFTEN WE HAVE TARGETED MEDICAID 

6951
05:16:30,437 --> 05:16:32,239
WAIVER PROGRAMS BUT THAT MAY BE 

6952
05:16:32,239 --> 05:16:32,773
LIMITED TO SPECIAL NEEDS 

6953
05:16:32,773 --> 05:16:39,880
POPULATIONS.

6954
05:16:39,880 --> 05:16:42,616
AS YOU HEARD THIS IS MY SLIDE 

6955
05:16:42,616 --> 05:16:44,218
BECAUSE THE REQUIREMENTS FOR 

6956
05:16:44,218 --> 05:16:45,285
TRAINING IN GENERAL PSYCHIATRY 

6957
05:16:45,285 --> 05:16:47,221
AND MANY OTHER MENTAL HEALTH 

6958
05:16:47,221 --> 05:16:47,755
SPECIALTIES IS VIRTUALLY 

6959
05:16:47,755 --> 05:16:48,889
NOTHING.

6960
05:16:48,889 --> 05:16:50,557
AND THAT SOMETHING THAT WE 

6961
05:16:50,557 --> 05:16:51,692
REALLY HAVE TO ADDRESS AND THE 

6962
05:16:51,692 --> 05:16:54,028
LINK CENTER IS ONE OF THOSE 

6963
05:16:54,028 --> 05:16:54,328
STRATEGIES.

6964
05:16:54,328 --> 05:16:56,096
I THINK THE ADMINISTRATION FOR 

6965
05:16:56,096 --> 05:16:57,197
COMMUNITY LIVING HAS HIGHLIGHTED

6966
05:16:57,197 --> 05:16:58,132
TO TRY AND ADDRESS SOME OF THE 

6967
05:16:58,132 --> 05:17:04,972
GAPS.

6968
05:17:04,972 --> 05:17:06,740
AGAIN, YOU HEARD SOME OF THE 

6969
05:17:06,740 --> 05:17:07,074
BARRIERS.

6970
05:17:07,074 --> 05:17:08,175
WE HAVE OPPORTUNITIES TO IMPROVE

6971
05:17:08,175 --> 05:17:10,110
HOW THINGS ARE WORKING.

6972
05:17:10,110 --> 05:17:12,312
FOR EXAMPLE, MIGRATE FROM 

6973
05:17:12,312 --> 05:17:14,515
TARGETED POPULATIONS IN LIMITED 

6974
05:17:14,515 --> 05:17:15,349
WAIVERS TO POPULATION HEALTH 

6975
05:17:15,349 --> 05:17:17,184
BASIS FOR SERVICE DELIVERY AND 

6976
05:17:17,184 --> 05:17:18,952
PAYMENT REFORMS.

6977
05:17:18,952 --> 05:17:21,522
IT'S GOING TO BE ONE STRATEGY.

6978
05:17:21,522 --> 05:17:24,158
LOOKING AT ADMINISTRATIVE CARE 

6979
05:17:24,158 --> 05:17:25,192
ORGANIZATIONS, BEHAVIORAL HEALTH

6980
05:17:25,192 --> 05:17:27,928
AND LONG-TERM SUPPORT SERVICES 

6981
05:17:27,928 --> 05:17:29,463
AND PROVIDER PARTNERSHIP IN 

6982
05:17:29,463 --> 05:17:30,364
EMERGING SERVICE DELIVERY 

6983
05:17:30,364 --> 05:17:30,664
STRUCTURES.

6984
05:17:30,664 --> 05:17:41,075
WE ALSO ARE WORKING TO 

6985
05:17:43,644 --> 05:17:44,578
RE-EXAMINE SPECIALTY CARE AND 

6986
05:17:44,578 --> 05:17:47,114
WE'VE RECENTLY FUNDED MC3 

6987
05:17:47,114 --> 05:17:48,382
CONNECT A PROGRAM NOW EXPANDING 

6988
05:17:48,382 --> 05:17:49,817
TO MORE SCHOOL-BASED 

6989
05:17:49,817 --> 05:17:54,154
INTERVENTIONS AND ALLOWS FOR 

6990
05:17:54,154 --> 05:17:54,922
PSYCHIATRIC CONSULTATION THROUGH

6991
05:17:54,922 --> 05:17:58,559
PEDIATRICIANS AND PRIMARY CARE 

6992
05:17:58,559 --> 05:18:00,761
AND OB-GYN AND OTHER PROVIDERS 

6993
05:18:00,761 --> 05:18:06,100
TO HELP ADDRESS THE NEEDS OF 

6994
05:18:06,100 --> 05:18:06,967
PEOPLE AND YOUTH WITH 

6995
05:18:06,967 --> 05:18:09,236
CO-OCCURRING ASD IN MENTAL 

6996
05:18:09,236 --> 05:18:10,270
HEALTH THAT COME TO THEIR 

6997
05:18:10,270 --> 05:18:12,639
PROVIDERS FOR CARE WHO MAY FEEL 

6998
05:18:12,639 --> 05:18:13,507
OVERWHELMED AND NOT SURE OF HOW 

6999
05:18:13,507 --> 05:18:18,345
TO PROVIDE THAT TYPE OF CARE.

7000
05:18:18,345 --> 05:18:19,379
THERE ARE OPPORTUNITIES MORE AND

7001
05:18:19,379 --> 05:18:24,118
MORE CROSS-SYSTEM COLLABORATION 

7002
05:18:24,118 --> 05:18:26,487
AND THERE'S AN EXAMPLE OF 

7003
05:18:26,487 --> 05:18:28,689
PARTNER ORGANIZATIONS ALL 

7004
05:18:28,689 --> 05:18:29,389
PARTNERING TOGETHER ON THE LINK 

7005
05:18:29,389 --> 05:18:36,296
CENTER ALONG WITH OTHERS.

7006
05:18:36,296 --> 05:18:40,534
SO WHAT ARE RECOMMENDATIONS FOR 

7007
05:18:40,534 --> 05:18:41,135
YOUR CONSIDERATION?

7008
05:18:41,135 --> 05:18:43,137
FIRST WE HAVE TO ENHANCE 

7009
05:18:43,137 --> 05:18:44,371
PSYCHIATRIC TREATMENT OPTIONS 

7010
05:18:44,371 --> 05:18:46,540
ALONG THE CONTINUUM OF CARE 

7011
05:18:46,540 --> 05:18:48,142
ELIGIBLE FOR PEOPLE WITH ASD.

7012
05:18:48,142 --> 05:18:51,879
WE DON'T WANT TO JUST USE IN 

7013
05:18:51,879 --> 05:18:53,180
PATIENT HOSPITAL BEDS WHICH ARE 

7014
05:18:53,180 --> 05:18:57,184
NOT EQUIPPED TO MANAGE THE NEEDS

7015
05:18:57,184 --> 05:18:57,851
NECESSARILY BUT WANT HOSPITAL 

7016
05:18:57,851 --> 05:18:58,852
BEDS AVAILABLE WHEN THEY'RE 

7017
05:18:58,852 --> 05:19:01,889
NEEDED AND APPROPRIATE.

7018
05:19:01,889 --> 05:19:04,191
WE NEED TO ENHANCE OPTIONS ALONG

7019
05:19:04,191 --> 05:19:06,326
AN ENTIRE CONTINUUM OF CARE.

7020
05:19:06,326 --> 05:19:07,094
WE HAVE TO RECOGNIZE CONDITIONS 

7021
05:19:07,094 --> 05:19:09,196
CAN OCCUR AT THE SAME TIME IN A 

7022
05:19:09,196 --> 05:19:13,100
PERSON AND SO WE HAVE TO BE ABLE

7023
05:19:13,100 --> 05:19:14,601
TO ADAPT AND ADDRESS WHATEVER 

7024
05:19:14,601 --> 05:19:17,171
THE PERSON IS EXPERIENCING TO 

7025
05:19:17,171 --> 05:19:20,774
BEST MEET THEIR NEED AND 

7026
05:19:20,774 --> 05:19:23,310
STRUCTURES TO MEET THE NEEDS AND

7027
05:19:23,310 --> 05:19:25,345
ENHANCE WORKFORCE KNOWLEDGE AND 

7028
05:19:25,345 --> 05:19:25,679
AVAILABILITY.

7029
05:19:25,679 --> 05:19:28,448
WE CERTAINLY HAVE TO FOSTER 

7030
05:19:28,448 --> 05:19:29,149
TRAUMA-INFORMED AND PERSON 

7031
05:19:29,149 --> 05:19:30,384
CENTERED CARE TO ADDRESS THE 

7032
05:19:30,384 --> 05:19:33,320
NEEDS IN THE BEST WAY POSSIBLE 

7033
05:19:33,320 --> 05:19:34,788
AND CONSIDER BIOLOGY AND SOCIAL 

7034
05:19:34,788 --> 05:19:37,257
CIRCUMSTANCES AND EVEN 

7035
05:19:37,257 --> 05:19:38,058
ENVIRONMENTAL ISSUES.

7036
05:19:38,058 --> 05:19:41,395
I'M INVOLVED IN HELPING IN THE 

7037
05:19:41,395 --> 05:19:41,929
CONSTRUCTION OF SEVERAL 

7038
05:19:41,929 --> 05:19:42,996
FACILITIES WHERE WE'RE LOOKING 

7039
05:19:42,996 --> 05:19:47,701
MORE AND MORE AT MODERN 

7040
05:19:47,701 --> 05:19:49,770
ENVIRONMENTS TO HELP ADDRESS HOW

7041
05:19:49,770 --> 05:19:53,106
TO BEST MEET THE NEEDS OF 

7042
05:19:53,106 --> 05:19:55,309
POPULATION WHO'S HAVE COMPLEX 

7043
05:19:55,309 --> 05:19:55,809
HISTORIES.

7044
05:19:55,809 --> 05:19:59,379
WE ALSO HAVE TO DEVELOP 

7045
05:19:59,379 --> 05:20:02,583
ALTERNATIVES TO LAW ENFORCEMENT 

7046
05:20:02,583 --> 05:20:04,051
ARREST AND INCARCERATION 

7047
05:20:04,051 --> 05:20:07,321
WHENEVER SAFE AND I SPENT TIME 

7048
05:20:07,321 --> 05:20:08,522
AS A FORENSIC PSYCHIATRIST.

7049
05:20:08,522 --> 05:20:10,224
IT'S CLEAR WE HAVE AN OVER 

7050
05:20:10,224 --> 05:20:11,758
REPRESENTATION OF PEOPLE WITH 

7051
05:20:11,758 --> 05:20:15,195
ASD BEING ARRESTED AND BROUGHT 

7052
05:20:15,195 --> 05:20:16,096
INTO FORENSIC SYSTEMS AND THAT 

7053
05:20:16,096 --> 05:20:17,531
IS NOT THE BEST PLACE FOR THEM 

7054
05:20:17,531 --> 05:20:22,135
TO GET THEIR SERVICES MET.

7055
05:20:22,135 --> 05:20:23,437
THEIR NEEDS MET.

7056
05:20:23,437 --> 05:20:26,073
WE HAVE TO EXPAND CRISIS 

7057
05:20:26,073 --> 05:20:28,308
SERVICES THROUGH 9-8-8 AND OTHER

7058
05:20:28,308 --> 05:20:30,010
AVENUES TO ADDRESS THE NEEDS OF 

7059
05:20:30,010 --> 05:20:32,980
PEOPLE WITH ASD AND PROMOTE 

7060
05:20:32,980 --> 05:20:35,182
EXAMPLES LIKE THE ONE THROUGH 

7061
05:20:35,182 --> 05:20:39,553
HRSA OF PEDIATRIC MENTAL HEALTH 

7062
05:20:39,553 --> 05:20:42,789
CARE PROGRAMS TO INTERVENE AS 

7063
05:20:42,789 --> 05:20:43,790
EARLY AS POSSIBLE.

7064
05:20:43,790 --> 05:20:48,295
I WANT TO POINT OUT WORK THROUGH

7065
05:20:48,295 --> 05:20:49,496
THE SAMHSA ADMINISTRATION.

7066
05:20:49,496 --> 05:20:51,365
THIS IS TAKING PLACE THROUGH 

7067
05:20:51,365 --> 05:20:53,300
MANY YEARS BUT WE LIKE TO CALL 

7068
05:20:53,300 --> 05:20:55,102
IT OUR BEYOND BEDS EFFORT.

7069
05:20:55,102 --> 05:20:58,038
IT'S STARTING IN 2017 WHERE 

7070
05:20:58,038 --> 05:21:00,340
THERE WAS A BIG PUSH IN THE 

7071
05:21:00,340 --> 05:21:04,611
MEDIA SPEAKING ABOUT NEEDING 

7072
05:21:04,611 --> 05:21:07,080
MORE INSTITUTIONAL CARE AND FROM

7073
05:21:07,080 --> 05:21:08,248
A POLICY PERSPECTIVE MANY HAVE 

7074
05:21:08,248 --> 05:21:09,816
BEEN WORKING HARD TO ADDRESS 

7075
05:21:09,816 --> 05:21:12,052
THAT FRAMEWORK TO SAY NO, WE 

7076
05:21:12,052 --> 05:21:13,754
NEED A CONTINUUM OF PSYCHIATRIC 

7077
05:21:13,754 --> 05:21:14,621
CARE THAT BEGINS IN THE 

7078
05:21:14,621 --> 05:21:16,223
COMMUNITY.

7079
05:21:16,223 --> 05:21:20,093
BEFORE WE IDENTIFY WE NEED MORE 

7080
05:21:20,093 --> 05:21:21,228
HOSPITAL BEDS AS THE SOLE 

7081
05:21:21,228 --> 05:21:23,163
SOLUTION TO SOME OF THE PUBLIC 

7082
05:21:23,163 --> 05:21:33,507
MENTAL HEALTH NEEDS.

7083
05:21:34,808 --> 05:21:36,476
FROM THERE WE PRODUCED PAPERS 

7084
05:21:36,476 --> 05:21:38,612
AVAILABLE ON THE WEBSITE AND 

7085
05:21:38,612 --> 05:21:41,114
THERE'S CONNECTED AND STRONG TO 

7086
05:21:41,114 --> 05:21:43,350
ADDRESS ISSUES OF SOCIAL 

7087
05:21:43,350 --> 05:21:48,689
ISOLATION AND LONELINESS AND 

7088
05:21:48,689 --> 05:21:52,759
STRENGTHENING THE WORKFORCE FOR 

7089
05:21:52,759 --> 05:21:53,160
THE POPULATION.

7090
05:21:53,160 --> 05:21:54,461
THESE ARE TWO PAPERS YOU MAY BE 

7091
05:21:54,461 --> 05:21:55,062
INTERESTED IN.

7092
05:21:55,062 --> 05:21:58,298
ONE IS A PAPER PUBLISHED IN 2017

7093
05:21:58,298 --> 05:22:01,234
CALLED THE VITAL ROLE OF 

7094
05:22:01,234 --> 05:22:02,536
SPECIALIZED APPROACHES PERSONS 

7095
05:22:02,536 --> 05:22:04,004
WITH DEVELOPMENT AND MENTAL 

7096
05:22:04,004 --> 05:22:06,606
HEALTH DISABILITIES TURNED INTO 

7097
05:22:06,606 --> 05:22:08,475
TWO ACADEMIC PEER-REVIEWED 

7098
05:22:08,475 --> 05:22:10,944
PAPERS THAT WERE PUBLISHED IN 

7099
05:22:10,944 --> 05:22:11,511
PSYCHIATRIC SERVICES MORE 

7100
05:22:11,511 --> 05:22:15,248
RECENTLY AND THEN THERE WAS A 

7101
05:22:15,248 --> 05:22:17,684
PAPER CRISIS SERVICES ADDRESSING

7102
05:22:17,684 --> 05:22:18,819
UNIQUE NEEDS THAT SPEAKS TO THE 

7103
05:22:18,819 --> 05:22:23,123
ISSUES AS IT RELATES TO 9-8-8 

7104
05:22:23,123 --> 05:22:25,125
AND OTHER CRISIS SERVICES BEING 

7105
05:22:25,125 --> 05:22:27,194
BUILT OUT AND HEARD ABOUT 

7106
05:22:27,194 --> 05:22:27,894
BEFORE.

7107
05:22:27,894 --> 05:22:31,298
I URGE TO YOU LOOK AT THOSE 

7108
05:22:31,298 --> 05:22:35,602
PAPERS FOR YOUR ADVOCATION AND 

7109
05:22:35,602 --> 05:22:37,304
THERE MUST BE ATTENTION TO 

7110
05:22:37,304 --> 05:22:38,605
BEHAVIORAL AND PERSONAL SUPPORT 

7111
05:22:38,605 --> 05:22:42,109
AND ABA AND UNDERSTANDING OF BIO

7112
05:22:42,109 --> 05:22:44,111
PSYCHOSOCIAL ISSUES AND THE 

7113
05:22:44,111 --> 05:22:47,514
REQUISITE TRAINING TO MINIMIZE 

7114
05:22:47,514 --> 05:22:48,915
DISRUPTIONS IN TREATMENT.

7115
05:22:48,915 --> 05:22:51,017
WE NEED TO ENCOURAGE ADVOCACY 

7116
05:22:51,017 --> 05:22:53,153
AND PLANNING FOR WORKFORCE TO 

7117
05:22:53,153 --> 05:22:54,287
DEVELOP TRAINING MODELS AND 

7118
05:22:54,287 --> 05:22:55,188
EARLY EXPOSURE IN TRAINING AND 

7119
05:22:55,188 --> 05:22:59,559
CLINICAL ROTATIONS.

7120
05:22:59,559 --> 05:23:01,762
I WANT TO THANK YOU AGAIN FOR 

7121
05:23:01,762 --> 05:23:04,131
INVITING ME TO SPEAK AND LOOK 

7122
05:23:04,131 --> 05:23:04,798
FORWARD IF THERE'S COMMENTS OR 

7123
05:23:04,798 --> 05:23:05,065
QUESTIONS.

7124
05:23:05,065 --> 05:23:10,370
THANK YOU.

7125
05:23:10,370 --> 05:23:11,037
>> THANK YOU.

7126
05:23:11,037 --> 05:23:11,938
WE'LL HAVE COMMENTS AND 

7127
05:23:11,938 --> 05:23:13,507
QUESTIONS AT THE CONCLUSION OF 

7128
05:23:13,507 --> 05:23:15,509
THE PANEL AND THE FINAL PANELIST

7129
05:23:15,509 --> 05:23:17,244
MR. JONAH CUNNINGHAM THE 

7130
05:23:17,244 --> 05:23:19,413
PRESIDENT AND CEO OF THE 

7131
05:23:19,413 --> 05:23:20,614
NATIONAL ASSOCIATION OF COUNTY 

7132
05:23:20,614 --> 05:23:23,150
BEHAVIORAL HEALTH AND 

7133
05:23:23,150 --> 05:23:23,650
DEVELOPMENT DISABILITY 

7134
05:23:23,650 --> 05:23:23,917
DIRECTORS.

7135
05:23:23,917 --> 05:23:26,853
THANK YOU FOR JOINING US.

7136
05:23:26,853 --> 05:23:27,821
>> THANK YOU FOR HAVING
ME.

7137
05:23:27,821 --> 05:23:29,456
I'VE LEARNED A LOT TODAY AND 

7138
05:23:29,456 --> 05:23:30,824
APPRECIATE THE INVITATION.

7139
05:23:30,824 --> 05:23:34,594
AS DR. GORDON SAID I'M JONAH 

7140
05:23:34,594 --> 05:23:36,363
CUNNINGHAM AND HONORED AND 

7141
05:23:36,363 --> 05:23:39,666
PRIVILEGED TO BE THE CEO OF 

7142
05:23:39,666 --> 05:23:42,302
COUNTY BEHAVIORAL HEALTH AND 

7143
05:23:42,302 --> 05:23:43,570
DEVELOPMENT DISABILITY DIRECTORS

7144
05:23:43,570 --> 05:23:45,539
AND ALSO IN THE ROLE I SERVE AS 

7145
05:23:45,539 --> 05:23:46,807
THE EXECUTIVE DIRECTOR OF THE 

7146
05:23:46,807 --> 05:23:47,874
NATIONAL ASSOCIATION OF RURAL 

7147
05:23:47,874 --> 05:23:49,509
MENTAL HEALTH AND WE'LL TALK 

7148
05:23:49,509 --> 05:23:55,015
ABOUT BOTH THOSE ASSOCIATIONS 

7149
05:23:55,015 --> 05:24:00,353
HERE IN A MOMENT.

7150
05:24:00,353 --> 05:24:01,621
THERE'S THREE GOALS.

7151
05:24:01,621 --> 05:24:05,192
FIRST INTRODUCE YOU TO THE TWO 

7152
05:24:05,192 --> 05:24:05,959
ORGANIZATIONS AS WELL AS PROVIDE

7153
05:24:05,959 --> 05:24:10,530
AN EVERY VIEW OF THE LOCAL 

7154
05:24:10,530 --> 05:24:14,301
DEVELOPMENT DISABILITY SYSTEM OR

7155
05:24:14,301 --> 05:24:15,302
I/DD SYSTEMS AND HIGHLIGHT 

7156
05:24:15,302 --> 05:24:17,604
CHALLENGES AND OPPORTUNITIES 

7157
05:24:17,604 --> 05:24:18,972
SPOKEN ABOUT MY MY COLLEAGUES 

7158
05:24:18,972 --> 05:24:21,575
FOR COLLABORATION SPECIFICALLY 

7159
05:24:21,575 --> 05:24:22,609
SURROUNDING 9-8-8 CRISIS 

7160
05:24:22,609 --> 05:24:26,546
RESPONSE.

7161
05:24:26,546 --> 05:24:36,990
ABOUT STATES ESTABLISHED 

7162
05:24:38,492 --> 05:24:40,560
AUTHORITIES TO DEAL WITH 

7163
05:24:40,560 --> 05:24:41,294
BEHAVIORAL HEALTH CONCERNS WITH 

7164
05:24:41,294 --> 05:24:43,563
SUBSTANCE USE AND MENTAL HEALTH.

7165
05:24:43,563 --> 05:24:44,898
IT'S NOT APPLES TO ORANGES.

7166
05:24:44,898 --> 05:24:48,235
I'D LIKE TO SAY IT'S APPLES TO 

7167
05:24:48,235 --> 05:24:49,336
APPLES BUT THERE'S A WIDE 

7168
05:24:49,336 --> 05:24:53,406
VARIETY OF APPLES, GALA, PINK 

7169
05:24:53,406 --> 05:24:58,612
LATE  -- LADY AND GOLDEN 

7170
05:24:58,612 --> 05:25:00,480
DELICIOUS AND THERE'S LOCAL 

7171
05:25:00,480 --> 05:25:01,815
AUTHORITIES COUNTY BASED, 

7172
05:25:01,815 --> 05:25:04,150
REGIONAL, STATE ADMINISTERED.

7173
05:25:04,150 --> 05:25:07,821
THERE'S MEDICARE CARVE-INS AND 

7174
05:25:07,821 --> 05:25:09,923
CARVE-OUTS, LEVY AUTHORITY AND 

7175
05:25:09,923 --> 05:25:11,525
SOME ADVISORY AND SOME OVERSEE 

7176
05:25:11,525 --> 05:25:13,126
MEDICAID CONTRACTING.

7177
05:25:13,126 --> 05:25:14,594
WE TRY TO REPRESENT ALL THE 

7178
05:25:14,594 --> 05:25:23,470
AUTHORITIES OR APPLES.

7179
05:25:23,470 --> 05:25:27,207
THE BOTTOM LINE IS WE DO IT 

7180
05:25:27,207 --> 05:25:32,112
THROUGH ADVOCACY AND PART OF AN 

7181
05:25:32,112 --> 05:25:33,380
ASSOCIATION OF COUNTIES.

7182
05:25:33,380 --> 05:25:34,347
ANOTHER ACRONYM.

7183
05:25:34,347 --> 05:25:39,019
I APOLOGIZE.

7184
05:25:39,019 --> 05:25:41,621
THE OTHER ORGANIZATION AND I LED

7185
05:25:41,621 --> 05:25:43,123
THE ASSOCIATION FOR RURAL MENTAL

7186
05:25:43,123 --> 05:25:46,259
HEALTH AND THERE'S A VARIETY OF 

7187
05:25:46,259 --> 05:25:47,193
MEMBERS FROM SERVICE PROVIDERS 

7188
05:25:47,193 --> 05:25:49,529
TO STUDENTS TO ACADEMICS TO 

7189
05:25:49,529 --> 05:25:51,865
ADVOCATES ALL WITH A FOCUS ON 

7190
05:25:51,865 --> 05:25:54,267
INCREASING ACCESS, AVAILABILITY 

7191
05:25:54,267 --> 05:25:55,835
AND ACCEPTABILITY OF BEHAVIORAL 

7192
05:25:55,835 --> 05:25:58,138
HEALTH SO MENTAL HEALTH AND 

7193
05:25:58,138 --> 05:26:00,874
SUBSTANCE USE SERVICES IN RURAL 

7194
05:26:00,874 --> 05:26:04,844
COMMUNITIES AND AN AFFILIATE OF 

7195
05:26:04,844 --> 05:26:08,715
NACBHDD AND IT'S AN AFFILIATE OF

7196
05:26:08,715 --> 05:26:09,683
MACO AND SO ON.

7197
05:26:09,683 --> 05:26:13,820
WITH NARMH WE COMPLETED OUR 50th

7198
05:26:13,820 --> 05:26:15,488
CONFERENCE LAST MONTH IN 

7199
05:26:15,488 --> 05:26:17,190
PITTSBURGH AND WITH OUR FRIENDS 

7200
05:26:17,190 --> 05:26:22,596
WE PUBLISH A QUARTERLY JOURNAL 

7201
05:26:22,596 --> 05:26:25,799
FOR RURAL MENTAL HEALTH.

7202
05:26:25,799 --> 05:26:29,703
A WICK  -- QUICK OVERVIEW OF THE

7203
05:26:29,703 --> 05:26:34,608
SYSTEM AND HOW THEY LOOK.

7204
05:26:34,608 --> 05:26:40,513
WE ENGAGED IN A PROJECT WHEN WE 

7205
05:26:40,513 --> 05:26:42,382
WITH THE LOCAL SYSTEM WE KNOW 

7206
05:26:42,382 --> 05:26:44,584
WHAT THE WORDS MEAN INDIVIDUALLY

7207
05:26:44,584 --> 05:26:46,219
BUT NOT ACTUALLY.

7208
05:26:46,219 --> 05:26:50,857
SO WE DID TWO THINGS.

7209
05:26:50,857 --> 05:26:53,226
WE LOOKED AT TWO STATES AND 

7210
05:26:53,226 --> 05:26:58,531
LOCAL SYSTEMS TO COMPARE AND 

7211
05:26:58,531 --> 05:27:01,601
CONTRAST AND TEXAS AND MICHIGAN 

7212
05:27:01,601 --> 05:27:03,970
AND HEALTH AUTHORITIES AND 

7213
05:27:03,970 --> 05:27:05,972
LOOKED AT THREE THINGS.

7214
05:27:05,972 --> 05:27:07,941
FIRST, AN OVERVIEW OF THE SYSTEM

7215
05:27:07,941 --> 05:27:09,609
AND WHAT IS IT IT AND WHERE ARE 

7216
05:27:09,609 --> 05:27:11,077
THERE AUTHORITIES AND FUNDING 

7217
05:27:11,077 --> 05:27:12,345
STREAMS AND DO THEY PROVIDE 

7218
05:27:12,345 --> 05:27:14,381
SERVICES OR OVERSEE SERVICES, 

7219
05:27:14,381 --> 05:27:14,881
ETCETERA.

7220
05:27:14,881 --> 05:27:18,618
SECONDLY THE RELATIONSHIP WITH 

7221
05:27:18,618 --> 05:27:20,020
MEDICAID SINCE IT'S A NUMBER ONE

7222
05:27:20,020 --> 05:27:22,856
PAIR FOR MENTAL HEALTH SERVICES 

7223
05:27:22,856 --> 05:27:26,626
AND THE RELATIONSHIP WITH THE 

7224
05:27:26,626 --> 05:27:28,094
CRISIS RESPONSE SYSTEM SINCE THE

7225
05:27:28,094 --> 05:27:31,398
LAUNCH OF 9-8-8 AND HOW IS IT 

7226
05:27:31,398 --> 05:27:33,667
POSITIONED TO HELP PROVIDE 

7227
05:27:33,667 --> 05:27:35,335
SERVICES, IF NOT AT LEAST 

7228
05:27:35,335 --> 05:27:37,604
COORDINATE THE DELIVERY OF 

7229
05:27:37,604 --> 05:27:37,837
SERVICE.

7230
05:27:37,837 --> 05:27:39,205
WE HAVE A QR CODE IF YOU'RE 

7231
05:27:39,205 --> 05:27:39,973
INTERESTED IN READING IT.

7232
05:27:39,973 --> 05:27:43,043
I TRIED TO MAKE IT SUCCINCT AND 

7233
05:27:43,043 --> 05:27:43,810
DIGESTIBLE SINCE WE'RE TRYING TO

7234
05:27:43,810 --> 05:27:45,345
DO 50 OF THESE THINGS.

7235
05:27:45,345 --> 05:27:47,614
GOING TO THE NEXT SLIDE, ONE OF 

7236
05:27:47,614 --> 05:27:50,617
THE BIG THINGS WE KNOW WE 

7237
05:27:50,617 --> 05:27:54,087
LEARNED FROM THE REPORT THE 

7238
05:27:54,087 --> 05:27:55,321
POPULATION AN OVERLAP AND THEY 

7239
05:27:55,321 --> 05:27:57,991
DON'T HAPPEN IN A SILO BUT ALSO 

7240
05:27:57,991 --> 05:28:00,293
THE LOCATION OF LEADERSHIP 

7241
05:28:00,293 --> 05:28:00,593
MATTERS.

7242
05:28:00,593 --> 05:28:09,469
OFTEN WE DEI -- SEE IDD COMBINED

7243
05:28:09,469 --> 05:28:14,607
WITH ADULT SERVICES OR CAN BE 

7244
05:28:14,607 --> 05:28:16,543
LOCATED WITH BEHAVIORAL HEALTH 

7245
05:28:16,543 --> 05:28:21,815
SERVICES AND THERE'S PROS AND 

7246
05:28:21,815 --> 05:28:24,918
CONS OF EACH.

7247
05:28:24,918 --> 05:28:27,253
DESIGNING SYSTEMS TO DELIVER TO 

7248
05:28:27,253 --> 05:28:28,254
BOTH POPULATIONS OR 

7249
05:28:28,254 --> 05:28:34,027
COMORBIDITIES I SHOULD SAY.

7250
05:28:34,027 --> 05:28:35,462
LASTLY, FUNDING STREAMS THEY'RE 

7251
05:28:35,462 --> 05:28:38,598
RENEWABLE AND WHETHER IT'S 

7252
05:28:38,598 --> 05:28:39,833
MEDICAID REIMBURSEMENT OR 

7253
05:28:39,833 --> 05:28:43,336
FEDERAL GRANT, THEY ALL HAVE SUN

7254
05:28:43,336 --> 05:28:44,804
SET AND POLITICAL TENSIONS BUT 

7255
05:28:44,804 --> 05:28:46,473
THEY MATTER IN THE LONG RUN THE 

7256
05:28:46,473 --> 05:28:47,240
SERVICE DELIVERIES TO OUR 

7257
05:28:47,240 --> 05:28:57,450
COMMUNITIES.

7258
05:28:58,685 --> 05:29:03,123
I DON'T WANT TO SOUND POLY 

7259
05:29:03,123 --> 05:29:07,794
ANNISH AND BUT IT'S A TIME OF 

7260
05:29:07,794 --> 05:29:09,162
TRANSFORMATION LAST JULY WE 

7261
05:29:09,162 --> 05:29:13,333
LAUNCHED 9-8-8 EXPANDING THE 

7262
05:29:13,333 --> 05:29:16,402
SUICIDE PREVENTION LIFE LINE NO 

7263
05:29:16,402 --> 05:29:20,206
LONGER A 1-800 NUMBER AND 

7264
05:29:20,206 --> 05:29:21,975
CREATED SOMEONE TO CONTACT AND 

7265
05:29:21,975 --> 05:29:24,110
RESPOND AND SOMEWHERE SAFE TO 

7266
05:29:24,110 --> 05:29:24,577
GO.

7267
05:29:24,577 --> 05:29:25,645
IT'S STILL BEING BUILT.

7268
05:29:25,645 --> 05:29:27,580
OBVIOUSLY YOU LOOK AT A PATCH 

7269
05:29:27,580 --> 05:29:29,916
WORK SYSTEM WHEN WE TALK ABOUT 

7270
05:29:29,916 --> 05:29:30,884
CRISIS RESPONSE.

7271
05:29:30,884 --> 05:29:32,952
IT OFTEN MATTERS ON LOCAL 

7272
05:29:32,952 --> 05:29:33,920
LEADERSHIP AND STRUCTURES AND 

7273
05:29:33,920 --> 05:29:34,754
SYSTEMS IN PLACE AND THE FUNDING

7274
05:29:34,754 --> 05:29:37,724
IN PLACE.

7275
05:29:37,724 --> 05:29:39,025
THREE PILLARS FOR THAT SOMEONE 

7276
05:29:39,025 --> 05:29:42,562
TO CONTACT AND SOMEONE TO 

7277
05:29:42,562 --> 05:29:44,931
RESPOND AND SAFE DO TO GO I 

7278
05:29:44,931 --> 05:29:47,700
WANTED TO HIGHLIGHT.

7279
05:29:47,700 --> 05:29:50,370
9-8-8 ADMINISTERED BY VIBRANT 

7280
05:29:50,370 --> 05:29:51,671
AND MOBILE CRISIS RESPONSE 

7281
05:29:51,671 --> 05:29:54,607
THROUGH THE AMERICAN RESCUE PLAN

7282
05:29:54,607 --> 05:29:58,144
ACT TO ALLOW FOR AND ENHANCE 

7283
05:29:58,144 --> 05:30:00,146
MEDICAID MATCH TO DEVELOP A 

7284
05:30:00,146 --> 05:30:02,749
MOBILE CRISIS RESPONSE SYSTEM TO

7285
05:30:02,749 --> 05:30:05,218
ACTUALLY GET PROVIDERS OUT IN 

7286
05:30:05,218 --> 05:30:06,219
THE COMMUNITIES.

7287
05:30:06,219 --> 05:30:07,787
AND LASTLY SOMEWHERE SAFE TO GO.

7288
05:30:07,787 --> 05:30:10,356
THERE'S BEEN AN EXPANSION OF THE

7289
05:30:10,356 --> 05:30:13,893
CERTIFIED COMMUNITY BEHAVIORAL 

7290
05:30:13,893 --> 05:30:19,332
HEALTH CLINICS OR WITH CCBHCs IN

7291
05:30:19,332 --> 05:30:21,768
12 STATES CERTIFIED COMMUNITY 

7292
05:30:21,768 --> 05:30:23,403
BEHAVIORAL HEALTH CLINICS AND 

7293
05:30:23,403 --> 05:30:26,039
DEMONSTRATING TO GO NATIONWIDE 

7294
05:30:26,039 --> 05:30:27,540
BY 2030 THROUGH THE SAFER 

7295
05:30:27,540 --> 05:30:30,310
COMMUNITIES ACT OF LAST YEAR.

7296
05:30:30,310 --> 05:30:32,679
THERE'S LIMITATIONS WITHIN ALL 

7297
05:30:32,679 --> 05:30:33,079
THESE.

7298
05:30:33,079 --> 05:30:35,548
WE TALKED ABOUT WITH 9-8-8 

7299
05:30:35,548 --> 05:30:39,285
MAKING SURE IT'S ACCESSIBLE TO 

7300
05:30:39,285 --> 05:30:41,054
EVERYONE WITHIN THE COMMUNITY 

7301
05:30:41,054 --> 05:30:43,089
THERE'S ALSO CONCERNS ON LAW 

7302
05:30:43,089 --> 05:30:52,098
ENFORCEMENT AS WELL AND GEOROUTE

7303
05:30:52,098 --> 05:30:54,901
GEO ROUTING AND I'M FROM UTAH 

7304
05:30:54,901 --> 05:30:57,770
AND THEN HAD TO BE ROUTED TO 

7305
05:30:57,770 --> 05:30:58,538
MARYLAND.

7306
05:30:58,538 --> 05:31:09,048
THAT'S AN ISSUE TALKED ABOUT.

7307
05:31:10,683 --> 05:31:14,354
AND BUILDING ON THE CHALLENGES 

7308
05:31:14,354 --> 05:31:17,957
AND OPPORTUNITIES AND I DON'T 

7309
05:31:17,957 --> 05:31:22,128
WANT TO SOUND POLLYANNAISH AND 

7310
05:31:22,128 --> 05:31:25,531
WHETHER I TALK TO MEMBERS ON THE

7311
05:31:25,531 --> 05:31:26,199
BEHAVIORAL HEALTH SIDE OF THE 

7312
05:31:26,199 --> 05:31:28,635
FENCE I WANT TO TALK ABOUT 

7313
05:31:28,635 --> 05:31:32,038
WORKFORCE AND THE BATTLE FOR 

7314
05:31:32,038 --> 05:31:33,206
TALENT SUPPLEMENTING WITH PEER 

7315
05:31:33,206 --> 05:31:34,941
PROFESSIONALS AND MORE DIRE FOR 

7316
05:31:34,941 --> 05:31:38,111
THOSE ON THE IDE SIDE OF THE 

7317
05:31:38,111 --> 05:31:41,681
FENCE WITH TURNOVER IN DIRECT 

7318
05:31:41,681 --> 05:31:42,515
SUPPORT PROFESSIONALS AND THE 

7319
05:31:42,515 --> 05:31:46,152
NEED TO FOCUS ON THAT AND 

7320
05:31:46,152 --> 05:31:51,157
PROGRAMS AND THE NATIONAL HEALTH

7321
05:31:51,157 --> 05:31:53,893
SERVICE CORPS OR LONE PAYMENT 

7322
05:31:53,893 --> 05:32:00,733
PROGRAMS AND OTHER 

7323
05:32:00,733 --> 05:32:03,169
PROSPECTIVELILY AND I KNOW OUR 

7324
05:32:03,169 --> 05:32:04,070
FRIENDS HAVE EXPERIENCED A BOOM 

7325
05:32:04,070 --> 05:32:08,942
AND BUST CYCLE OF FUNDING AND 

7326
05:32:08,942 --> 05:32:13,212
THEY GOT FUNDING AND SLOWLY WENT

7327
05:32:13,212 --> 05:32:18,618
AWAY AND BEHAVIORAL HEALTH IS 

7328
05:32:18,618 --> 05:32:29,128
DIFFERENT BUT WE ALSO ARE AND 

7329
05:32:34,701 --> 05:32:45,178
AND MEDICAID AND SOMETHING TO BE

7330
05:32:46,879 --> 05:32:50,984
AWARE OF AND A NET ON CMS AND 

7331
05:32:50,984 --> 05:32:53,686
THING THEY'VE DONE AND MAKE SURE

7332
05:32:53,686 --> 05:32:57,323
CHILDREN CONTINUE COVERAGE AND 

7333
05:32:57,323 --> 05:32:59,125
IT WILL BE A CONTINUED ISSUE AND

7334
05:32:59,125 --> 05:33:04,063
I'LL NOTE IN THE CONTEXT OF 

7335
05:33:04,063 --> 05:33:05,732
CRISIS RESPONSE FOR SURPRISE 

7336
05:33:05,732 --> 05:33:07,166
BILLING GROUND AMBULATORY 

7337
05:33:07,166 --> 05:33:10,970
SERVICES ARE EXEMPT FROM THAT 

7338
05:33:10,970 --> 05:33:11,137
LAW.

7339
05:33:11,137 --> 05:33:14,140
THERE WAS A LAW IF YOU GO TO A 

7340
05:33:14,140 --> 05:33:17,477
FACILITY THAT'S IN NETWORK LIKE 

7341
05:33:17,477 --> 05:33:19,278
YOUR PROVIDER'S OUT OF NETWORK 

7342
05:33:19,278 --> 05:33:21,414
YOU WOULDN'T GET A SURPRISE 

7343
05:33:21,414 --> 05:33:21,614
BILL.

7344
05:33:21,614 --> 05:33:24,017
THAT COULD HAVE GREAT 

7345
05:33:24,017 --> 05:33:25,284
RAMIFICATIONS FOR CRISIS 

7346
05:33:25,284 --> 05:33:35,828
RESPONSE AND ACCESS TO SERVICES.

7347
05:33:37,430 --> 05:33:40,533
AND THERE'S BEEN ENHANCED 

7348
05:33:40,533 --> 05:33:41,801
COLLABORATION BETWEEN SECTORS 

7349
05:33:41,801 --> 05:33:43,903
WHETHER BEHAVIORAL HEALTH, LAW 

7350
05:33:43,903 --> 05:33:46,072
ENFORCEMENT, EDUCATION, OLDER 

7351
05:33:46,072 --> 05:33:48,141
ADULTS AND PUBLIC HEALTH.

7352
05:33:48,141 --> 05:33:50,543
THERE'S A NEED FOR THE 

7353
05:33:50,543 --> 05:33:51,210
COLLABORATION AND THROUGH THIS 

7354
05:33:51,210 --> 05:33:53,112
THERE'S BEEN NEW APPROACHES THAT

7355
05:33:53,112 --> 05:33:58,051
HAVE OCCURRED AND CONTINUE TO 

7356
05:33:58,051 --> 05:33:58,284
EMERGE.

7357
05:33:58,284 --> 05:34:01,821
LASTLY ENGAGEMENT WITH COMMUNITY

7358
05:34:01,821 --> 05:34:07,226
ENSURING THERE'S NOTHING ABOUT 

7359
05:34:07,226 --> 05:34:08,761
US WITHOUT US AND THERE'S THE 

7360
05:34:08,761 --> 05:34:15,034
IDD WORLD WE NEED TO AMPLIFY IT 

7361
05:34:15,034 --> 05:34:15,334
FURTHER.

7362
05:34:15,334 --> 05:34:19,238
I'LL SHIFT SO WHAT I REFER TO A 

7363
05:34:19,238 --> 05:34:20,606
COUPLE OTHER PRODUCTS THAT MAY 

7364
05:34:20,606 --> 05:34:21,641
BE OF INTEREST.

7365
05:34:21,641 --> 05:34:23,576
ONE PROJECT WE DID WITH THE 

7366
05:34:23,576 --> 05:34:24,811
NATIONAL ASSOCIATION OF COUNTIES

7367
05:34:24,811 --> 05:34:28,581
WAS TO LOOK AT ALL THE FUNDING 

7368
05:34:28,581 --> 05:34:29,549
THAT COULD GO TOWARDS THAT 

7369
05:34:29,549 --> 05:34:31,117
RUBRIC OF SOMEONE TO CONTACT, 

7370
05:34:31,117 --> 05:34:32,452
SOMEONE TO RESPOND, SOMEWHERE 

7371
05:34:32,452 --> 05:34:35,488
SAFE TO GO AND TRY TO IDENTIFY 

7372
05:34:35,488 --> 05:34:42,462
FEDERAL FUNDING STREAMS AND 

7373
05:34:42,462 --> 05:34:48,601
NON-GOVERNMENTAL FOUNDI IING -- 

7374
05:34:48,601 --> 05:34:50,503
FUNDING STREAMS FOR A CRISIS 

7375
05:34:50,503 --> 05:34:51,871
RESPONSE SYSTEM.

7376
05:34:51,871 --> 05:34:54,440
A FEW INTERESTING TAKES WE 

7377
05:34:54,440 --> 05:34:56,375
LEARNED THE DEPARTMENT OF 

7378
05:34:56,375 --> 05:34:57,643
EDUCATION HAS FUNDING FOR THE 

7379
05:34:57,643 --> 05:34:58,945
CRISIS SYSTEM.

7380
05:34:58,945 --> 05:35:00,613
THE DEPARTMENT OF AGRICULTURE 

7381
05:35:00,613 --> 05:35:06,953
CAN DEVELOP BRICK AND MORTAR 

7382
05:35:06,953 --> 05:35:17,497
SYSTEMS AND THERE'S NO FUNDING 

7383
05:35:17,964 --> 05:35:28,407
FOR AUTISM SPECTRUM DISORDER.

7384
05:35:31,210 --> 05:35:33,179
WE HIGHLIGHT AND FOCUS ON 

7385
05:35:33,179 --> 05:35:35,548
SPECIFIC POPULATIONS KEY TO 

7386
05:35:35,548 --> 05:35:36,182
BUILD OUGHT THAT CRISIS RESPONSE

7387
05:35:36,182 --> 05:35:42,421
SYSTEM.

7388
05:35:42,421 --> 05:35:45,892
THE FIRST ARE COUNTY OFFICIALS 

7389
05:35:45,892 --> 05:35:48,861
WE HIGHLIGHT LEADERS TO PROVIDE 

7390
05:35:48,861 --> 05:35:49,795
INSPIRATION AS THEY GRAPPLE WITH

7391
05:35:49,795 --> 05:35:52,565
THIS IDEA OF HOW TO BUILD OUT A 

7392
05:35:52,565 --> 05:35:54,000
CRISIS RESPONSE SYSTEM THAT'S 

7393
05:35:54,000 --> 05:35:56,702
RESPONSIVE TO THEIR COMMUNITY.

7394
05:35:56,702 --> 05:35:59,138
THE NEXT REPORT WHICH WILL BE 

7395
05:35:59,138 --> 05:36:01,641
RELEASED THIS MONTH HOPEFULLY BY

7396
05:36:01,641 --> 05:36:03,543
END OF MONTH KNOCK ON WOOD IS 

7397
05:36:03,543 --> 05:36:08,114
FOCUSSED ON INTELLECTUAL AND 

7398
05:36:08,114 --> 05:36:10,316
DEVELOPMENTAL DISABILITY 

7399
05:36:10,316 --> 05:36:10,583
DIRECTORS.

7400
05:36:10,583 --> 05:36:12,618
WE'RE EXCITED AND IF YOU'RE 

7401
05:36:12,618 --> 05:36:14,954
CURIOUS ABOUT THE FIRST 

7402
05:36:14,954 --> 05:36:17,223
MESSAGING DOCUMENT THERE'S THE 

7403
05:36:17,223 --> 05:36:19,592
QR CODE.

7404
05:36:19,592 --> 05:36:23,129
THERE'S MY CONTACT INFORMATION.

7405
05:36:23,129 --> 05:36:25,831
IF WE CAN BE OF ANY HELP DON'T 

7406
05:36:25,831 --> 05:36:27,500
HESITATE TO REACH OUT AND NOTE 

7407
05:36:27,500 --> 05:36:29,936
ON MY E-MAIL TO MAKE IT EASIER 

7408
05:36:29,936 --> 05:36:31,938
ON EVERYONE WE DROPPED ONE OF 

7409
05:36:31,938 --> 05:36:32,638
THE "D"s.

7410
05:36:32,638 --> 05:36:33,773
THANK YOU FOR HAVING ME.

7411
05:36:33,773 --> 05:36:34,607
IT'S BEEN AN HONOR.

7412
05:36:34,607 --> 05:36:44,116
>> THANK YOU VERY MUCH.

7413
05:36:44,116 --> 05:36:45,785
ALL THREE PANELISTS TALKING 

7414
05:36:45,785 --> 05:36:47,119
ABOUT QUALITY SERVICES FOR 

7415
05:36:47,119 --> 05:36:47,820
INDIVIDUALS WITH AUTISM WHO HAVE

7416
05:36:47,820 --> 05:36:56,896
MENTAL HEALTH NEEDS.

7417
05:36:56,896 --> 05:37:06,939
I'LL OPEN UP TO MEMBERS OF THE  

7418
05:37:06,939 --> 05:37:10,610
COMMITTEE AND YETTA.

7419
05:37:10,610 --> 05:37:14,614
>> WE'RE HEARING WE NEED
TRAINED

7420
05:37:14,614 --> 05:37:15,548
PROFESSIONALS TO BUILD CAPACITY 

7421
05:37:15,548 --> 05:37:17,183
AND OFFER ACCESSIBLE RESOURCES 

7422
05:37:17,183 --> 05:37:18,417
NOT JUST AVAILABLE BUT 

7423
05:37:18,417 --> 05:37:19,852
ACCESSIBLE RESOURCES AND 

7424
05:37:19,852 --> 05:37:22,755
SERVICES AND I WANT IT MAKE SURE

7425
05:37:22,755 --> 05:37:26,626
THAT THIS IS SOMETHING WE 

7426
05:37:26,626 --> 05:37:34,634
INCLUDE IN OUR NEXT STRATEGIC 

7427
05:37:34,634 --> 05:37:39,772
PLAN THERE'S A FACE-OFF-YEAR 

7428
05:37:39,772 --> 05:37:40,673
GRANT.

7429
05:37:40,673 --> 05:37:45,811
I LOVE THE IDEA -- THERE'S THE 

7430
05:37:45,811 --> 05:37:47,613
IDEA OF THE FIVE-YEAR GRANT AND 

7431
05:37:47,613 --> 05:37:58,124
WHO WILL MAINTAIN THE WEBSITE?

7432
05:38:02,028 --> 05:38:07,300
>> AS FUNDERS IT'S
SOMETHING WE 

7433
05:38:07,300 --> 05:38:09,235
WANT TO KEEP OUR EYE ON AND 

7434
05:38:09,235 --> 05:38:09,869
MAINTAINING POST FIVE YEARS FOR 

7435
05:38:09,869 --> 05:38:19,979
SURE.

7436
05:38:21,981 --> 05:38:23,215
>> THROUGHOUT THE
PRESENTATIONS 

7437
05:38:23,215 --> 05:38:25,451
I DIDN'T HEAR MENTION ABOUT 

7438
05:38:25,451 --> 05:38:26,085
AUTISTIC PEOPLE INFORMING THE 

7439
05:38:26,085 --> 05:38:34,560
WORK THAT YOUR DOING.

7440
05:38:34,560 --> 05:38:36,429
I'M HOPING IT'S A QUESTION THAT 

7441
05:38:36,429 --> 05:38:39,732
DOESN'T NEED TO BE ASKED AND 

7442
05:38:39,732 --> 05:38:41,133
INCORPORATED IN EVERYTHING YOU 

7443
05:38:41,133 --> 05:38:47,506
DO BUT I'D FEEL MORE COMFORTABLE

7444
05:38:47,506 --> 05:38:51,911
IN HEARING THAT OUT LOUD.

7445
05:38:51,911 --> 05:38:55,214
>> ARE PEOPLE WITH THE
LIVED 

7446
05:38:55,214 --> 05:38:55,915
EXPERIENCE INVOLVED IN THE WORK 

7447
05:38:55,915 --> 05:38:57,983
YOU'RE DOING?

7448
05:38:57,983 --> 05:39:00,820
>> THE STEERING COMMITTEE
THAT 

7449
05:39:00,820 --> 05:39:04,557
GUIDES THE WORK OF THE LINK 

7450
05:39:04,557 --> 05:39:07,827
CENTER HAS SEVERAL AUTISTIC 

7451
05:39:07,827 --> 05:39:09,095
FOLKS REPRESENTED ON THERE AND 

7452
05:39:09,095 --> 05:39:10,629
REPRESENTING THE AUTISTIC 

7453
05:39:10,629 --> 05:39:13,065
COMMUNITY.

7454
05:39:13,065 --> 05:39:16,802
>> ANY OTHER RESPONSES?

7455
05:39:16,802 --> 05:39:20,306
>> ONE OF THE MESSAGES
DOCS WE 

7456
05:39:20,306 --> 05:39:22,608
HIGHLIGHT IS AN EXAMPLE FROM 

7457
05:39:22,608 --> 05:39:25,144
CHAMPAGNE COUNTY THIS IS THE 

7458
05:39:25,144 --> 05:39:28,547
14th YEAR THEY'VE HAD A 

7459
05:39:28,547 --> 05:39:31,317
DISABILITY CONFERENCE DESIGN BY 

7460
05:39:31,317 --> 05:39:33,452
THOSE WITH DISABILITIES AND ON 

7461
05:39:33,452 --> 05:39:34,320
THE SPECTRUM DISORDER AND A HOST

7462
05:39:34,320 --> 05:39:35,221
OF OTHERS.

7463
05:39:35,221 --> 05:39:37,256
THEY DESIGN THE PROGRAM AND 

7464
05:39:37,256 --> 05:39:39,058
BRING IN VENDORS AND STATE AND 

7465
05:39:39,058 --> 05:39:40,226
LOCAL GOVERNMENT AND IT'S AROUND

7466
05:39:40,226 --> 05:39:42,628
250 PEOPLE BUT IT'S BEEN A GREAT

7467
05:39:42,628 --> 05:39:43,362
EVENT BUT IT'S DESIGN BY THEM 

7468
05:39:43,362 --> 05:39:53,539
FOR THEM.

7469
05:39:59,545 --> 05:40:02,715
>> THANK YOU VERY MUCH.

7470
05:40:02,715 --> 05:40:09,221
ALICIA.

7471
05:40:09,221 --> 05:40:10,623
WHAT ARE YOU RESOURCES YOU HOPE 

7472
05:40:10,623 --> 05:40:16,162
TO GENERATE AND WHAT DO YOU 

7473
05:40:16,162 --> 05:40:17,096
INSTEAD TO DETERMINE WHETHER 

7474
05:40:17,096 --> 05:40:24,103
THEY WORK OR DON'T WORK?

7475
05:40:24,103 --> 05:40:26,172
>> WE LOOK TO ELEVATE
WHAT'S OUT

7476
05:40:26,172 --> 05:40:27,373
THERE AND ADAPT TO WHAT'S OUT 

7477
05:40:27,373 --> 05:40:27,673
THERE.

7478
05:40:27,673 --> 05:40:33,679
WE'RE HOPING WE DON'T HAVE TO DO

7479
05:40:33,679 --> 05:40:38,617
TOO MUCH CREATION OF RESOURCES 

7480
05:40:38,617 --> 05:40:39,418
ACKNOWLEDGING IT MAY NEED TO BE 

7481
05:40:39,418 --> 05:40:49,628
WHAT WE DO.

7482
05:40:59,338 --> 05:41:02,541
WE HAVE TOPICS BECAUSE OF OUR 

7483
05:41:02,541 --> 05:41:03,476
ENGAGEMENT WITH SAMHSA IS AROUND

7484
05:41:03,476 --> 05:41:05,511
CRISIS SERVICES AND SUPPORTS.

7485
05:41:05,511 --> 05:41:10,950
ONE THING WE NOTICED IN WHAT IS 

7486
05:41:10,950 --> 05:41:18,624
OUT THERE IS THERE'S A LACK OF 

7487
05:41:18,624 --> 05:41:20,192
CRISIS TEMPLATES FOR PEOPLE 

7488
05:41:20,192 --> 05:41:21,060
IDENTIFYING WHEN THEY'RE FEELING

7489
05:41:21,060 --> 05:41:26,866
OKAY AS SOME FOLKS HAVE PUT IT 

7490
05:41:26,866 --> 05:41:31,770
IN MY COMPANY WHAT DO THEY NEED 

7491
05:41:31,770 --> 05:41:34,173
WHEN THEY'RE NOT FEELING OKAY.

7492
05:41:34,173 --> 05:41:36,575
WE WORKED WITH PARTNERS IN 

7493
05:41:36,575 --> 05:41:38,110
COMMUNICATION FIRST AND FOLKS ON

7494
05:41:38,110 --> 05:41:40,513
THE STEERING COMMITTEE TO 

7495
05:41:40,513 --> 05:41:42,281
DEVELOP A CRISIS PLAN DEVELOPED 

7496
05:41:42,281 --> 05:41:45,484
BY PEOPLE WITH LIVED EXPERIENCE 

7497
05:41:45,484 --> 05:41:46,485
BASED ON THEIR OWN UNFORTUNATELY

7498
05:41:46,485 --> 05:41:47,086
EXPERIENCES WITH THE CRISIS 

7499
05:41:47,086 --> 05:41:52,324
SYSTEM.

7500
05:41:52,324 --> 05:41:54,026
THAT WAS BASED UPON THINGS WE 

7501
05:41:54,026 --> 05:41:56,462
WERE SEEING LACKING IN THE FIELD

7502
05:41:56,462 --> 05:41:57,429
WHILE PEOPLE MAY HAVE BEEN 

7503
05:41:57,429 --> 05:42:02,301
INVOLVED WITH RESEARCHERS AND 

7504
05:42:02,301 --> 05:42:05,271
OTHERS THERE WAS NOTHING SOLELY 

7505
05:42:05,271 --> 05:42:08,440
DEVELOPED BY THE COMMUNITY.

7506
05:42:08,440 --> 05:42:12,044
I'M NOT SURE I ANSWERED THE 

7507
05:42:12,044 --> 05:42:13,112
WHOLE QUESTION.

7508
05:42:13,112 --> 05:42:13,579
SORRY.

7509
05:42:13,579 --> 05:42:18,617
>> MAYBE I WASN'T CLEAR.

7510
05:42:18,617 --> 05:42:20,052
THE TOOLS YOU'RE SHARING OR 

7511
05:42:20,052 --> 05:42:20,920
PUTTING TOGETHER IS BASED ON 

7512
05:42:20,920 --> 05:42:26,492
LIVED EXPERIENCES BUT HOW MANY 

7513
05:42:26,492 --> 05:42:33,632
AND HOW WILL THEY BE IF SHARED 

7514
05:42:33,632 --> 05:42:34,967
WITH THE BROADER COMMUNITY HOW 

7515
05:42:34,967 --> 05:42:36,001
WILL THEY BE EXPRESSED WITH 

7516
05:42:36,001 --> 05:42:37,636
LIVED EXPERIENCES?

7517
05:42:37,636 --> 05:42:40,973
>> SO THE HOW MANY WILL
SORT OF 

7518
05:42:40,973 --> 05:42:42,841
EVOLVE AS WE GO BASED UPON WHERE

7519
05:42:42,841 --> 05:42:49,515
WE'RE IDENTIFYING THERE'S A GAP.

7520
05:42:49,515 --> 05:42:54,286
WE HAVE A PRETTY STRONG VETTING 

7521
05:42:54,286 --> 05:42:58,991
PROCESS IN VETTING RESOURCES BUT

7522
05:42:58,991 --> 05:42:59,692
HOW MANY WE'RE DEVELOPING WILL 

7523
05:42:59,692 --> 05:43:01,560
BE DETERMINED AS WE SORT OF DIG 

7524
05:43:01,560 --> 05:43:07,600
INTO THESE AS I SAID THE TOPICAL

7525
05:43:07,600 --> 05:43:17,509
FRAMEWORK SO CAN'T PREDICT THAT 

7526
05:43:17,509 --> 05:43:22,615
OUT BUT WITH OUR CRISIS PLANNING

7527
05:43:22,615 --> 05:43:24,083
WE'VE FOCUSED ON GIVING 

7528
05:43:24,083 --> 05:43:26,185
INDIVIDUALS AND FAMILIES TOOLS.

7529
05:43:26,185 --> 05:43:27,753
WHILE THERE'S SOME OUT THERE, A,

7530
05:43:27,753 --> 05:43:33,225
IT'S HARD TO ACCESS THEM SO 

7531
05:43:33,225 --> 05:43:34,293
ACCESSIBILITY BEING THE ISSUE 

7532
05:43:34,293 --> 05:43:36,562
AND TOOLS OUT THERE HAVEN'T BEEN

7533
05:43:36,562 --> 05:43:38,631
DEVELOPED WITH THE COMMUNITY OR 

7534
05:43:38,631 --> 05:43:46,605
PEOPLE WITH LIVED EXPERIENCE.

7535
05:43:46,605 --> 05:43:47,506
SO WE'RE PROVIDING TEMPLATES 

7536
05:43:47,506 --> 05:43:49,675
BASED ON PEOPLE'S EXPERIENCES 

7537
05:43:49,675 --> 05:43:58,484
ALONG WITH SOME SAMPLES AS WELL.

7538
05:43:58,484 --> 05:43:59,652
>> MITCHELL.

7539
05:43:59,652 --> 05:44:07,526
>> WHERE AND TO WHAT
EXTENT DOES

7540
05:44:07,526 --> 05:44:10,663
SUBSTANCE USE DISORDER FIT IN 

7541
05:44:10,663 --> 05:44:11,997
YOUR WORK?

7542
05:44:11,997 --> 05:44:13,165
>> HOW DOES IT FIT IN THE
PLANS 

7543
05:44:13,165 --> 05:44:23,008
YOU HAVE?

7544
05:44:23,008 --> 05:44:24,743
>> THEY'RE CO-LOCATED WITH

7545
05:44:24,743 --> 05:44:26,145
MENTAL HEALTH AND MAY PROVIDE 

7546
05:44:26,145 --> 05:44:28,747
SERVICES AND MAY ALSO ADMINISTER

7547
05:44:28,747 --> 05:44:29,948
MEDICARE CONTRACTING OR 

7548
05:44:29,948 --> 05:44:36,922
OVERSIGHT OF THE PROVIDERS.

7549
05:44:36,922 --> 05:44:37,256
>> THANK YOU.

7550
05:44:37,256 --> 05:44:38,657
ANY OTHER RESPONSES?

7551
05:44:38,657 --> 05:44:39,158
>> YES.

7552
05:44:39,158 --> 05:44:47,132
I WAS GOING TO MENTION THAT WE 

7553
05:44:47,132 --> 05:44:49,802
ACKNOWLEDGE SUBSTANCE USE BEING 

7554
05:44:49,802 --> 05:44:50,869
A HIGH PROPORTION OF FOLKS 

7555
05:44:50,869 --> 05:44:52,771
TALKED ABOUT WHEN WE TALK ABOUT 

7556
05:44:52,771 --> 05:44:58,410
INDIVIDUALS WITH CO-OCCURRING 

7557
05:44:58,410 --> 05:45:00,746
MENTAL HEALTH AND ACKNOWLEDGE 

7558
05:45:00,746 --> 05:45:01,747
THERE'S A DEARTH OF KNOWLEDGE 

7559
05:45:01,747 --> 05:45:03,315
AND TREATMENT OUT THERE.

7560
05:45:03,315 --> 05:45:08,821
WE HAVE BEEN CLOSELY PARTNERING 

7561
05:45:08,821 --> 05:45:12,758
WITH OUR COLLEAGUES AT THE 

7562
05:45:12,758 --> 05:45:14,593
NATIONAL ASSOCIATION OF HEAD 

7563
05:45:14,593 --> 05:45:15,260
INJURY ADMINISTRATORS AND 

7564
05:45:15,260 --> 05:45:17,296
THEY'VE BEEN DIGGING INTO THIS A

7565
05:45:17,296 --> 05:45:18,864
LITTLE MORE THAN WE HAVE AND 

7566
05:45:18,864 --> 05:45:20,499
SOMETHING WE'VE IDENTIFIED WE 

7567
05:45:20,499 --> 05:45:21,366
WANT TO SPECIFICALLY TARGET ON 

7568
05:45:21,366 --> 05:45:27,372
THE WEBSITE.

7569
05:45:27,372 --> 05:45:29,274
>> THANK YOU.

7570
05:45:29,274 --> 05:45:35,547
SCOTT.

7571
05:45:35,547 --> 05:45:37,282
>> THANK YOU, DR. GORDON.

7572
05:45:37,282 --> 05:45:38,717
I APPRECIATE THE PRESENTATIONS 

7573
05:45:38,717 --> 05:45:41,286
IN TERMS OF LOOKING AT SYSTEM 

7574
05:45:41,286 --> 05:45:42,221
CHANGE MENTAL HEALTH SERVICES 

7575
05:45:42,221 --> 05:45:46,792
AND STACY IT'S GOOD TO SEE YOU 

7576
05:45:46,792 --> 05:45:49,862
PERSONALLY SPEAKING, I GUESS.

7577
05:45:49,862 --> 05:45:51,830
WE INTERACTED THINGS IN 

7578
05:45:51,830 --> 05:45:52,698
PENNSYLVANIA AND GLAD TO SEE YOU

7579
05:45:52,698 --> 05:45:58,737
DOING THINGS AT THE NATIONAL 

7580
05:45:58,737 --> 05:46:00,272
LEVEL THESE IMPORTANT TOPICS 

7581
05:46:00,272 --> 05:46:00,906
HAVE BEEN RAISED IN THE SPACE 

7582
05:46:00,906 --> 05:46:02,541
AND RELATED TO THE EARLIER 

7583
05:46:02,541 --> 05:46:08,013
COMMENT IN TERMS OF AUTISTIC 

7584
05:46:08,013 --> 05:46:11,016
PEOPLE BEING INVOLVED THERE'S 

7585
05:46:11,016 --> 05:46:14,153
BARRIERS TO ENTRY FOR AUTISTIC 

7586
05:46:14,153 --> 05:46:16,955
INDIVIDUALS SERVING IN THESE 

7587
05:46:16,955 --> 05:46:17,389
ROLES.

7588
05:46:17,389 --> 05:46:19,391
I BELIEVE IN HAVING FOLKS ON 

7589
05:46:19,391 --> 05:46:22,594
ADVISORY BOARDS BUT NEED TO 

7590
05:46:22,594 --> 05:46:23,796
ENHANCE ACCESS TO THE WORKFORCE 

7591
05:46:23,796 --> 05:46:26,732
FOR PEOPLE IN THE MENTAL HEALTH 

7592
05:46:26,732 --> 05:46:28,167
SYSTEMS AND SHOULD SHOWED 

7593
05:46:28,167 --> 05:46:30,536
ENHANCEMENTS IN TERMS OF 

7594
05:46:30,536 --> 05:46:33,405
DIVERSITY OF INPUT AND 

7595
05:46:33,405 --> 05:46:36,341
THOUGHTERS AUTISTIC -- THOUGHT 

7596
05:46:36,341 --> 05:46:41,880
LEADERS AND BENEFIT THE SYSTEM.

7597
05:46:41,880 --> 05:46:44,149
CAN YOU SPEAK TO IDEAS AND 

7598
05:46:44,149 --> 05:46:49,388
SUGGESTIONS AS FAR AS RESOURCES,

7599
05:46:49,388 --> 05:47:00,065
POLICY, PRACTICES AND THE HEALTH

7600
05:47:03,435 --> 05:47:05,971
CARE SYSTEM HOW WE CAN SUPPORT 

7601
05:47:05,971 --> 05:47:07,606
SINCE MENTAL HEALTH AND WELL 

7602
05:47:07,606 --> 05:47:08,874
BEING CUTS ACROSS AGENCY ROLES.

7603
05:47:08,874 --> 05:47:10,309
WHAT CAN WE DO IN THE GOVERNMENT

7604
05:47:10,309 --> 05:47:13,312
TO HELP YOU ALL BE MORE 

7605
05:47:13,312 --> 05:47:15,314
SUCCESSFUL WITH YOUR 

7606
05:47:15,314 --> 05:47:17,282
ACCOMPLISHMENT IN TERMS OF 

7607
05:47:17,282 --> 05:47:18,317
INNOVATION LOOKING AT POLICIES 

7608
05:47:18,317 --> 05:47:21,687
AND PRACTICES FOR SYSTEMS 

7609
05:47:21,687 --> 05:47:21,954
CHANGE?

7610
05:47:21,954 --> 05:47:25,791
>> IF I COULD JUMP IN MY 

7611
05:47:25,791 --> 05:47:26,892
INTERNET WENT DOWN SO I'M 

7612
05:47:26,892 --> 05:47:27,559
CALLING IN.

7613
05:47:27,559 --> 05:47:28,193
CAN YOU HEAR ME?

7614
05:47:28,193 --> 05:47:38,704
>> YEAH, THANK YOU, DR.
KLINE.

7615
05:47:40,539 --> 05:47:42,608
COORDINATING ACROSS THE FEDERAL 

7616
05:47:42,608 --> 05:47:47,646
AGENCIES IS GOOD BUT WE CAN HAVE

7617
05:47:47,646 --> 05:47:49,648
IMPROVEMENT AND BETWEEN AGENCIES

7618
05:47:49,648 --> 05:47:52,251
THEY CAN CONTINUE TO WORK 

7619
05:47:52,251 --> 05:47:54,620
TOGETHER AROUND CRISIS SERVICES 

7620
05:47:54,620 --> 05:48:00,926
AND LOOKING AT DIVERSION FROM 

7621
05:48:00,926 --> 05:48:11,336
CRIMINAL LEGAL SETTINGS.

7622
05:48:13,071 --> 05:48:15,374
AND WE'LL LOOK TO HOW TO BEST 

7623
05:48:15,374 --> 05:48:16,541
SERVE COMPLEX POPULATION AND 

7624
05:48:16,541 --> 05:48:27,019
REDUCE THE SILOS IN FUNDING.

7625
05:48:44,269 --> 05:48:46,838
>> THERE'S SOME
AFFIRMATION 

7626
05:48:46,838 --> 05:48:54,413
BECAUSE RECENTLY THERE WAS 

7627
05:48:54,413 --> 05:48:57,582
ARTICLE AND FINDINGS SUGGESTED A

7628
05:48:57,582 --> 05:48:58,784
NEED FOR INTEGRATIVE MENTAL 

7629
05:48:58,784 --> 05:48:59,618
HEALTH AND EMPLOYMENT SERVICES 

7630
05:48:59,618 --> 05:49:03,455
AND WE OFTEN DON'T TALK ABOUT 

7631
05:49:03,455 --> 05:49:05,757
THOSE TOGETHER AND HOW CRITICAL 

7632
05:49:05,757 --> 05:49:07,626
EMPLOYMENT SERVICES BACK TO LISA

7633
05:49:07,626 --> 05:49:09,928
I BELIEVE SAID THE PURPOSE AND 

7634
05:49:09,928 --> 05:49:10,696
MEANING AND HOW IMPORTANT THAT 

7635
05:49:10,696 --> 05:49:12,097
IS.

7636
05:49:12,097 --> 05:49:13,765
AND THINKING ABOUT HOW THEY CAN 

7637
05:49:13,765 --> 05:49:16,969
REALLY GO HAND IN HAND.

7638
05:49:16,969 --> 05:49:19,171
THANKS FOR THAT QUESTION.

7639
05:49:19,171 --> 05:49:19,838
>> THANK YOU.

7640
05:49:19,838 --> 05:49:20,472
WE HAVE TIME FOR ONE LAST 

7641
05:49:20,472 --> 05:49:20,939
QUESTION.

7642
05:49:20,939 --> 05:49:22,975
TOM.

7643
05:49:22,975 --> 05:49:32,150
>> GREAT TALKS.

7644
05:49:32,150 --> 05:49:38,056
WE NEED TO SCREEN FOR AND 

7645
05:49:38,056 --> 05:49:42,995
IDENTIFY MENTAL HEALTH AND 

7646
05:49:42,995 --> 05:49:45,897
CURIOUS IF YOU'RE UNDERTAKING 

7647
05:49:45,897 --> 05:49:47,299
BROAD BASED SCREENING APPROACHES

7648
05:49:47,299 --> 05:49:49,534
WHAT I'VE SEEN IN COMMUNITIES 

7649
05:49:49,534 --> 05:49:51,603
HAVE BEEN MORE IDIOSYNCRATIC 

7650
05:49:51,603 --> 05:49:53,605
WHEN IT'S PRESENT OR FRANKLY 

7651
05:49:53,605 --> 05:49:55,407
MISSING CO-OCCURRING MENTAL 

7652
05:49:55,407 --> 05:49:58,543
HEALTH CONDITIONS IN PEOPLE WITH

7653
05:49:58,543 --> 05:49:59,311
AUTISM.

7654
05:49:59,311 --> 05:50:04,883
ARE WE AWARE OF ANY BROAD BASED 

7655
05:50:04,883 --> 05:50:05,150
ATTEMPTS.

7656
05:50:05,150 --> 05:50:06,852
WHAT DROVE A LOT OF THE ADVANCES

7657
05:50:06,852 --> 05:50:10,622
IN AUTISM WAS ACTUALLY 

7658
05:50:10,622 --> 05:50:11,123
IMPLEMENTING SCREENING 

7659
05:50:11,123 --> 05:50:17,029
PRACTICES.

7660
05:50:17,029 --> 05:50:20,332
AND WONDER.

7661
05:50:20,332 --> 05:50:25,837
>> WITH THE SAFER
COMMUNITIES 

7662
05:50:25,837 --> 05:50:33,712
ACT THEY ESTABLISHED TECHNICAL 

7663
05:50:33,712 --> 05:50:36,681
ASSISTANCE CENTER AND HELP 

7664
05:50:36,681 --> 05:50:37,749
REIMBURSEMENT WITHIN SCHOOLS.

7665
05:50:37,749 --> 05:50:45,123
THAT'S ONE RESOURCE.

7666
05:50:45,123 --> 05:50:46,558
>> I HAVE TO REMIND
EVERYBODY IF

7667
05:50:46,558 --> 05:50:48,827
YOU DON'T KNOW LISA TOPER'S 

7668
05:50:48,827 --> 05:50:50,595
WORK, SHE'S ALREADY CREATED 

7669
05:50:50,595 --> 05:50:51,830
EVERYTHING YOU'RE TRYING TO 

7670
05:50:51,830 --> 05:50:53,198
BUILD IN TERMS OF CRISIS 

7671
05:50:53,198 --> 05:50:58,603
INTERVENTION AND INSTRUMENTS AND

7672
05:50:58,603 --> 05:50:59,104
MEASUREMENTS AND TOOLS.

7673
05:50:59,104 --> 05:51:04,042
AND I ENCOURAGE YOU TO FIND HER 

7674
05:51:04,042 --> 05:51:05,377
IN THE MEETING.

7675
05:51:05,377 --> 05:51:11,183
SHE'S GOT GREAT RESOURCES.

7676
05:51:11,183 --> 05:51:13,485
>> THANK YOU FROM LISA IN
THE 

7677
05:51:13,485 --> 05:51:14,686
BACK FOR THOSE WHO COULDN'T HEAR

7678
05:51:14,686 --> 05:51:15,554
THAT.

7679
05:51:15,554 --> 05:51:18,924
WELL, I WANT TO THANK YOU OUR 

7680
05:51:18,924 --> 05:51:20,258
PANELISTS BOTH THREE PANELISTS 

7681
05:51:20,258 --> 05:51:26,631
WE JUST HEARD ON SERVICES BUT 

7682
05:51:26,631 --> 05:51:32,571
ALSO THE PANELISTS SPEAKING FROM

7683
05:51:32,571 --> 05:51:36,374
COMMUNITY RESEARCH AND THERE'S 

7684
05:51:36,374 --> 05:51:37,676
GREAT NEED FOR MENTAL HEALTH 

7685
05:51:37,676 --> 05:51:41,046
SERVICES AND CARE FOR 

7686
05:51:41,046 --> 05:51:41,713
INDIVIDUALS WITH AUTISM AND IT 

7687
05:51:41,713 --> 05:51:44,583
WAS ENCOURAGING TO HEAR FIRST 

7688
05:51:44,583 --> 05:51:47,285
ABOUT SOME OF THE EARLY RESEARCH

7689
05:51:47,285 --> 05:51:52,090
THAT IS SHOWING PROMISING THOUGH

7690
05:51:52,090 --> 05:51:53,725
EARLY RESULTS IN ADDRESSING SOME

7691
05:51:53,725 --> 05:51:55,093
OF THE INDIVIDUALS ON THE 

7692
05:51:55,093 --> 05:51:55,961
SPECTRUM AND HEARD FROM SAME 

7693
05:51:55,961 --> 05:51:58,930
RESEARCHERS FROM THE PANELISTS 

7694
05:51:58,930 --> 05:52:00,999
WITH COMMUNITY PERSPECTIVES AND 

7695
05:52:00,999 --> 05:52:02,634
FROM THE SERVICES PERSPECTIVE AS

7696
05:52:02,634 --> 05:52:05,303
WELL THAT WE NEED A LOT MORE 

7697
05:52:05,303 --> 05:52:09,307
OPTIONS AND BETTER TREATMENTS 

7698
05:52:09,307 --> 05:52:10,876
AND WE NEED FOCUSSING THOSE 

7699
05:52:10,876 --> 05:52:12,344
TREATMENTS ON INDIVIDUALS AND 

7700
05:52:12,344 --> 05:52:14,045
INCREASED ACCESSIBILITY AND 

7701
05:52:14,045 --> 05:52:15,981
IMPLEMENTATION OF THE 

7702
05:52:15,981 --> 05:52:16,515
EVIDENCE-BASED SERVICES.

7703
05:52:16,515 --> 05:52:17,916
THANK YOU VERY MUCH.

7704
05:52:17,916 --> 05:52:19,885
IT WAS A TREMENDOUSLY 

7705
05:52:19,885 --> 05:52:21,853
INFORMATIVE AFTERNOON THAT WILL 

7706
05:52:21,853 --> 05:52:24,156
INFORM WHAT WE VOTED ON THE 

7707
05:52:24,156 --> 05:52:25,991
STRATEGIC PLAN TO PAY ATTENTION 

7708
05:52:25,991 --> 05:52:26,858
SPECIFICALLY TO THESE ISSUES AND

7709
05:52:26,858 --> 05:52:28,560
I LOOK FORWARD TO WORKING WITH 

7710
05:52:28,560 --> 05:52:30,195
YOU ALL OVER THE COMING MONTHS 

7711
05:52:30,195 --> 05:52:32,063
AS WE REVISE THAT PLAN.

7712
05:52:32,063 --> 05:52:33,965
WITH THAT, I'M GOING TO TURN IT 

7713
05:52:33,965 --> 05:52:36,801
OVER TO SUSAN TO CLOSE OUT THE 

7714
05:52:36,801 --> 05:52:39,304
MEETING AND REMIND US ABOUT WHEN

7715
05:52:39,304 --> 05:52:40,505
OUR NEXT MEETING IS BUT THANK 

7716
05:52:40,505 --> 05:52:42,841
YOU ALL FOR JOINING US TODAY 

7717
05:52:42,841 --> 05:52:46,611
BOTH IN PERSON AND THOSE WHO 

7718
05:52:46,611 --> 05:52:47,612
JOINED ONLINE.

7719
05:52:47,612 --> 05:52:48,813
>> THANK YOU INDEED FOR A 

7720
05:52:48,813 --> 05:52:52,384
WONDERFUL AFTERNOON OF ROBUST 

7721
05:52:52,384 --> 05:52:52,984
DISCUSSION ON MENTAL HEALTH 

7722
05:52:52,984 --> 05:52:54,619
ISSUES WHICH HAS BEEN A HIGH 

7723
05:52:54,619 --> 05:52:56,188
PRIORITY FOR THE COMMITTEE AND 

7724
05:52:56,188 --> 05:52:58,123
WE APPRECIATE ALL THE INPUT AND 

7725
05:52:58,123 --> 05:52:59,124
WE'LL BE TAKING THAT INTO 

7726
05:52:59,124 --> 05:53:02,427
ACCOUNT AS WE PREPARE THE NEXT 

7727
05:53:02,427 --> 05:53:04,763
VERSION OF THE STRATEGIC PLAN 

7728
05:53:04,763 --> 05:53:05,330
UPDATES.

7729
05:53:05,330 --> 05:53:07,666
WITH THIS, WE WILL BE CLOSING 

7730
05:53:07,666 --> 05:53:08,700
THIS MEETING.

7731
05:53:08,700 --> 05:53:09,634
THE NEXT FULL COMMITTEE MEETING 

7732
05:53:09,634 --> 05:53:19,811
IS SCHEDULED FOR JANUARY 24, 

7733
05:53:19,811 --> 05:53:25,784
2024, 10:00 A.M. TO 5:00 P.M. 

7734
05:53:25,784 --> 05:53:27,652
AND WE'LL SEND OUT E-MAILS AND 

7735
05:53:27,652 --> 05:53:31,623
IN BETWEEN I MENTIONED E-MAILS 

7736
05:53:31,623 --> 05:53:34,326
WILL COME TO YOU REGARDING 

7737
05:53:34,326 --> 05:53:35,227
FOLLOW-UPS IN THE COMMUNITY 

7738
05:53:35,227 --> 05:53:37,963
BUSINESS AND I'LL SEND THOSE 

7739
05:53:37,963 --> 05:53:38,129
OUT.

7740
05:53:38,129 --> 05:53:40,899
I'D LIKE TO TAKE A MOMENT TO 

7741
05:53:40,899 --> 05:53:41,833
THANK OUR TEAM THE COORDINATION 

7742
05:53:41,833 --> 05:53:47,005
TEAM YOU SEE IN THE ROOM IN 

7743
05:53:47,005 --> 05:53:57,549
PERSON THANK YOU FOR THE SUPPORT

7744
05:54:00,218 --> 05:54:07,192
AND THE ROSE LEE AND ASSOCIATES 

7745
05:54:07,192 --> 05:54:09,661
CONTRACTOR AND THE NIH CENTER 

7746
05:54:09,661 --> 05:54:10,595
FOR INFORMATION TECHNOLOGY 

7747
05:54:10,595 --> 05:54:11,162
SUPPORTING THE MEETING.

7748
05:54:11,162 --> 05:54:12,063
THANK YOU SO MUCH AND WE'LL SEE 

7749
05:54:12,063 --> 05:54:22,307
YOU NEXT TIME.