1 00:00:05,240 --> 00:00:10,920 >>WELCOME TO 2 00:00:10,920 --> 00:00:13,040 DAY TWO NOW OF OUR IACC APRIL 3 00:00:13,040 --> 00:00:13,640 MEETING. 4 00:00:13,640 --> 00:00:15,040 I WANT TO THANK ALL THE 5 00:00:15,040 --> 00:00:16,440 COMMITTEE MEMBERS FOR THEIR HARD 6 00:00:16,440 --> 00:00:18,600 WORK AND PRODUCTIVE DISCUSSIONS 7 00:00:18,600 --> 00:00:21,440 WE HAD YESTERDAY AND THANK THEM 8 00:00:21,440 --> 00:00:23,240 IN ADVANCE FOR THEIR CONTINUED 9 00:00:23,240 --> 00:00:24,440 WORK TODAY. 10 00:00:24,440 --> 00:00:25,960 I ALSO WANT TO THANK MEMBERS OF 11 00:00:25,960 --> 00:00:28,800 THE PUBLIC WHO ARE FOLLOWING US 12 00:00:28,800 --> 00:00:32,600 ON THE NIH VIDEOCAST NETWORK. 13 00:00:32,600 --> 00:00:34,760 PLEASE NOTE THAT WE'VE UPDATED 14 00:00:34,760 --> 00:00:35,960 OUR AGENDA FOR TODAY. 15 00:00:35,960 --> 00:00:40,280 YOU CAN FIND THESE UPDATES ON 16 00:00:40,280 --> 00:00:42,680 THE IACC WEBSITE. 17 00:00:42,680 --> 00:00:46,720 WE WILL START WITH OUR PUBLIC 18 00:00:46,720 --> 00:00:48,160 COMMENT AND HEAR PRESENTATIONS 19 00:00:48,160 --> 00:00:49,360 ON THE TOPIC OF DIVERSE 20 00:00:49,360 --> 00:00:51,640 COMMUNICATION NEEDS. 21 00:00:51,640 --> 00:00:53,040 FOLLOWED BY A DISCUSSION OF THAT 22 00:00:53,040 --> 00:00:53,760 TOPIC. 23 00:00:53,760 --> 00:00:55,240 AFTER THE PANEL AND DISCUSSION, 24 00:00:55,240 --> 00:01:02,840 WE WILL RETURN TO OUR SUMMARY OF 25 00:01:02,840 --> 00:01:04,800 EVENTS WE DIDN'T FINISH 26 00:01:04,800 --> 00:01:06,480 YESTERDAY AND FINISH WITH 27 00:01:06,480 --> 00:01:09,240 ROUNDTABLE UPDATES AND CLOSING 28 00:01:09,240 --> 00:01:09,440 REMARKS. 29 00:01:09,440 --> 00:01:12,040 NOW WE'LL TURN IT OVER TO THE 30 00:01:12,040 --> 00:01:13,360 PUBLIC COMMENT SECTION AND TURN 31 00:01:13,360 --> 00:01:21,880 IT OVER TO SUSSAN -- SUSAN 32 00:01:21,880 --> 00:01:24,760 DANIELS TO RUN THE PUBLIC 33 00:01:24,760 --> 00:01:25,240 COMMENT SESSION. 34 00:01:25,240 --> 00:01:27,840 TAKE IT OVER. 35 00:01:27,840 --> 00:01:29,640 >> THANK YOU, JOSH. 36 00:01:29,640 --> 00:01:31,400 WE'LL START THE ORAL COMMENT 37 00:01:31,400 --> 00:01:32,080 SESSION. 38 00:01:32,080 --> 00:01:33,520 SO IT'S IN THREE PARTS. 39 00:01:33,520 --> 00:01:35,760 WE'RE GOING TO FIRST HEAR THE 40 00:01:35,760 --> 00:01:36,800 ORAL COMMENTS AND THEN I'LL 41 00:01:36,800 --> 00:01:38,240 SHARE WITH YOU THE WRITTEN 42 00:01:38,240 --> 00:01:41,840 COMMENTS THAT CAME IN AND THEN 43 00:01:41,840 --> 00:01:47,120 WE'RE GOING HAVE A DISCUSSION. 44 00:01:47,120 --> 00:01:50,480 THE ORDER IS DR. NICOLE SIMON, 45 00:01:50,480 --> 00:01:54,040 STEVIE MAYS, LISA MORGAN, BOB 46 00:01:54,040 --> 00:01:57,360 WELLS AND DR. EDLYN PENA. 47 00:01:57,360 --> 00:02:10,640 DR. SIMON, YOU MAY BEGIN. 48 00:02:10,640 --> 00:02:10,960 WELCOME. 49 00:02:10,960 --> 00:02:12,800 >> FEEL FREE TO TURN ON YOUR 50 00:02:12,800 --> 00:02:13,760 CAMERA, IF YOU'D LIKE. 51 00:02:13,760 --> 00:02:21,520 >> THE CAMERA'S NOT GOING ON. 52 00:02:21,520 --> 00:02:23,480 IT SAYS UNABLE TO START VIDEO. 53 00:02:23,480 --> 00:02:25,480 >> WE MIGHT BE ABLE TO HELP YOU 54 00:02:25,480 --> 00:02:26,400 WITH THAT. 55 00:02:26,400 --> 00:02:28,120 STILL SAYS IT CAN'T START VIDEO. 56 00:02:28,120 --> 00:02:28,880 CAN YOU HEAR ME? 57 00:02:28,880 --> 00:02:30,520 >> YES, WE CAN HEAR YOU SO 58 00:02:30,520 --> 00:02:30,920 PLEASE GO AHEAD. 59 00:02:30,920 --> 00:02:35,280 THANK YOU. 60 00:02:35,280 --> 00:02:38,600 >> FAILURE OF LANGUAGE 61 00:02:38,600 --> 00:02:39,640 DEVELOPMENT IS THE MOST 62 00:02:39,640 --> 00:02:40,640 DISTURBING CONCERN OF PARENTS 63 00:02:40,640 --> 00:02:43,240 WHO SEEK HELP FOR A CHILD AND 64 00:02:43,240 --> 00:02:45,960 SADLY THEY ARE OFTEN GIVEN A 65 00:02:45,960 --> 00:02:48,920 DIAGNOSIS OF AUTISM. 66 00:02:48,920 --> 00:02:51,240 DIFFICULTY LEARNING TO SPEAK IS 67 00:02:51,240 --> 00:02:55,560 NOT A SIGN THAT IS EVER MISSED. 68 00:02:55,560 --> 00:02:57,840 LANGUAGE IS A DEFINING FEATURE 69 00:02:57,840 --> 00:03:00,800 OF THE HUMAN SPECIES. 70 00:03:00,800 --> 00:03:01,920 SOCIAL DEVELOPMENT CANNOT 71 00:03:01,920 --> 00:03:05,840 ADVANCE FAR WITHOUT LANGUAGE. 72 00:03:05,840 --> 00:03:09,040 IN OCTOBER 1969, I READ THE 73 00:03:09,040 --> 00:03:13,480 ARTICLE BY WILLIAM WENDELL IN 74 00:03:13,480 --> 00:03:16,160 SCIENTIFIC AMERICAN ON ASPHYXIA 75 00:03:16,160 --> 00:03:20,640 AT BIRTH AND A BURST INTO TEARS. 76 00:03:20,640 --> 00:03:24,240 MY SWEET AUTISTIC SON, CONRAD, 77 00:03:24,240 --> 00:03:26,520 RAN TO THE KLEENEX BOX AND 78 00:03:26,520 --> 00:03:28,800 BROUGHT ME A TISSUE. 79 00:03:28,800 --> 00:03:32,440 THEY DESCRIBED DAMAGE OF THE 80 00:03:32,440 --> 00:03:36,160 AUDITORY OF PATHWAY OF MONKEYS 81 00:03:36,160 --> 00:03:37,720 SUBJECTED ONLY SIX TO EIGHT 82 00:03:37,720 --> 00:03:41,080 MINUTES OF ASPHYXIA AT BIRTH. 83 00:03:41,080 --> 00:03:42,480 CONRAD REQUIRED RESUSCITATION AT 84 00:03:42,480 --> 00:03:44,840 BIRTH AND THEN DISPLAYED SEVERE 85 00:03:44,840 --> 00:03:46,160 JUANDICE DURING THE FIRST WEEK 86 00:03:46,160 --> 00:03:49,880 OF LIFE. 87 00:03:49,880 --> 00:03:51,280 CONRAD'S DEVELOPMENTAL 88 00:03:51,280 --> 00:03:52,200 MILESTONES WERE ALL RIGHT ON 89 00:03:52,200 --> 00:03:53,880 TIME AND HE BEGAN TO SPEAK NEAR 90 00:03:53,880 --> 00:03:57,880 THE END OF HIS FIRST YEAR. 91 00:03:57,880 --> 00:04:00,360 OUR RELIEF WAS SHORT LIVED. 92 00:04:00,360 --> 00:04:03,080 IT WAS CONRAD'S NURSERY SCHOOL 93 00:04:03,080 --> 00:04:05,920 TEACHER WHO SUGGESTED HE BE 94 00:04:05,920 --> 00:04:08,280 EVALUATED BY A PSYCHIATRIST. 95 00:04:08,280 --> 00:04:12,800 CONRAD'S SPEECH WAS CLEAR WITH 96 00:04:12,800 --> 00:04:14,760 GOOD ARTICULATION BUT USED THE 97 00:04:14,760 --> 00:04:17,920 PRONOUN YOU INSTEAD OF I OR ME. 98 00:04:17,920 --> 00:04:20,720 AUTISM WAS A DIAGNOSIS HE WAS 99 00:04:20,720 --> 00:04:21,360 GIVEN SHORTLY BEFORE HIS THIRD 100 00:04:21,360 --> 00:04:23,840 BIRTHDAY. 101 00:04:23,840 --> 00:04:26,960 I HOPE MEMBERS OF THE COMMITTEE 102 00:04:26,960 --> 00:04:28,920 WILL DISCUSS MY COMMENTS ON 103 00:04:28,920 --> 00:04:29,320 LANGUAGE DISORDER. 104 00:04:29,320 --> 00:04:34,200 THANK YOU. 105 00:04:34,200 --> 00:04:35,840 >> THANK YOU SO MUCH, DR. SIMON 106 00:04:35,840 --> 00:04:37,280 FOR SHARING THAT COMMENT WITH 107 00:04:37,280 --> 00:04:37,640 US. 108 00:04:37,640 --> 00:04:38,080 THERE YOU ARE. 109 00:04:38,080 --> 00:04:40,720 WE CAN ALL SEE YOU. 110 00:04:40,720 --> 00:04:41,120 THANK YOU SO MUCH. 111 00:04:41,120 --> 00:04:44,400 >> I WAS READING MY PAPER. 112 00:04:44,400 --> 00:04:45,840 I DIDN'T SEE THE SIGN. 113 00:04:45,840 --> 00:04:48,760 >> IT'S NOT A PROBLEM. 114 00:04:48,760 --> 00:04:52,880 THANK YOU VERY MUCH. 115 00:04:52,880 --> 00:05:00,000 NEXT WE WILL GO TO STEVIE MAYS. 116 00:05:00,000 --> 00:05:04,480 >> THANK YOU, DR. DANIELS. 117 00:05:04,480 --> 00:05:08,840 >> MY NAME IS STEVIE MAYS I WORK 118 00:05:08,840 --> 00:05:11,680 FOR AN ACTIVIST WORK. 119 00:05:11,680 --> 00:05:13,720 I PREVIOUSLY WORKED AS A 120 00:05:13,720 --> 00:05:14,880 BEHAVIOR TECHNICIAN. 121 00:05:14,880 --> 00:05:17,120 A THERAPIST IN THE APPLIED 122 00:05:17,120 --> 00:05:18,800 BEHAVIOR ANALYSIS FIELD, AVA FOR 123 00:05:18,800 --> 00:05:20,480 FOUR YEARS. 124 00:05:20,480 --> 00:05:22,640 DURING THAT TIME, I FOUND THAT 125 00:05:22,640 --> 00:05:27,880 THE BEHAVIOR ANALYSIS 126 00:05:27,880 --> 00:05:33,040 CERTIFICATION BOARD, BACB 127 00:05:33,040 --> 00:05:34,480 DEMONSTRATE POOR ETHICAL 128 00:05:34,480 --> 00:05:35,880 RESPONSIBILITY OF THE PRACTICE 129 00:05:35,880 --> 00:05:37,240 OF STUDENTS' ACCESS TO 130 00:05:37,240 --> 00:05:41,480 APPROPRIATE MODALITIES OF 131 00:05:41,480 --> 00:05:42,800 COMMUNICATION. 132 00:05:42,800 --> 00:05:47,440 I BELIEVE CHILDREN DESERVE 133 00:05:47,440 --> 00:05:48,760 ACCESS TO LANGUAGE FOR THE 134 00:05:48,760 --> 00:05:50,760 COMMUNICATION METHOD BEST FOR 135 00:05:50,760 --> 00:05:53,400 THEIR NEEDS BUT HERE I WILL 136 00:05:53,400 --> 00:05:56,320 FOCUS ON THE VACB'S LACK OF 137 00:05:56,320 --> 00:06:00,840 RESEARCH AND EDUCATION FOR THE 138 00:06:00,840 --> 00:06:02,680 USE OF AUGMENTATIVE COMMUNING. 139 00:06:02,680 --> 00:06:04,240 IT REFERS TO A METHOD OF 140 00:06:04,240 --> 00:06:05,440 COMMUNICATION THAT DOES NOT RELY 141 00:06:05,440 --> 00:06:08,000 ON SPOKEN LANGUAGE OR 142 00:06:08,000 --> 00:06:08,320 VERBALIZATION. 143 00:06:08,320 --> 00:06:09,840 THIS MAY INCLUDE SIGN LANGUAGES, 144 00:06:09,840 --> 00:06:12,640 USING OF GESTURES, PICTURE 145 00:06:12,640 --> 00:06:13,960 BOARDS OR DEVICES DESIGNED TO 146 00:06:13,960 --> 00:06:16,480 ASSIST INDIVIDUALS THAT MAY NOT 147 00:06:16,480 --> 00:06:17,800 BE ABLE TO COMMUNICATE USING 148 00:06:17,800 --> 00:06:18,040 SPEECH. 149 00:06:18,040 --> 00:06:20,840 I ULTIMATELY LEFT THE FIELD OF 150 00:06:20,840 --> 00:06:22,000 AVA AFTER MY FOUR YEARS. 151 00:06:22,000 --> 00:06:23,400 I SAW A PATTERN OF STUDENTS 152 00:06:23,400 --> 00:06:25,920 WORKING IN THERAPY FOR YEARS AND 153 00:06:25,920 --> 00:06:28,440 NOT MAKING ANY SUBSTANTIAL GAINS 154 00:06:28,440 --> 00:06:29,920 IN VERBAL COMMUNICATION AND YET 155 00:06:29,920 --> 00:06:31,320 THE PROGRAM FORCED THESE 156 00:06:31,320 --> 00:06:33,600 CHILDREN TO CONTINUE TO RELY 157 00:06:33,600 --> 00:06:35,320 PRIMARILY ON VERBAL 158 00:06:35,320 --> 00:06:37,800 COMMUNICATION GOALS WITH SUBPAR 159 00:06:37,800 --> 00:06:39,640 AAC EDUCATION. 160 00:06:39,640 --> 00:06:40,760 ACCORDING TO AUTISTIC 161 00:06:40,760 --> 00:06:44,040 SELF-ADVOCACY NETWORK, ASAN, 162 00:06:44,040 --> 00:06:45,240 ONE-THIRD OF AUTISTIC PEOPLE 163 00:06:45,240 --> 00:06:48,600 FALL UNDER THE CATEGORY OF 164 00:06:48,600 --> 00:06:51,080 NON-SPEAKING AND WE NEED AAC TO 165 00:06:51,080 --> 00:06:52,320 SUPPORT OR SUPPLEMENT THEIR 166 00:06:52,320 --> 00:06:53,440 COMMUNICATION. 167 00:06:53,440 --> 00:06:55,160 THE AUTISTIC STUDENTS HAVE A 168 00:06:55,160 --> 00:06:57,680 DIFFERENCE IN THEIR BRAIN-BODY 169 00:06:57,680 --> 00:06:59,040 CONNECTION AFFECTS CONTROL. 170 00:06:59,040 --> 00:07:00,360 WHEN MUSCLE CONTROL IS MINIMIZED 171 00:07:00,360 --> 00:07:03,280 THE RESULTING BEHAVIORS ARE 172 00:07:03,280 --> 00:07:05,760 CONSIDERED AN INHERENT TRAIT OF 173 00:07:05,760 --> 00:07:06,000 AUTISM. 174 00:07:06,000 --> 00:07:07,240 THIS DIFFERENCE IN MUSCLE 175 00:07:07,240 --> 00:07:08,840 CONTROL IS ALSO SEEN IN USE OF 176 00:07:08,840 --> 00:07:11,800 VOICE AND OFTEN TREATED AS A 177 00:07:11,800 --> 00:07:14,000 BEHAVIORAL ISSUE IN AVA AND NOT 178 00:07:14,000 --> 00:07:17,200 AN ACCEPTED DIFFERENCE. 179 00:07:17,200 --> 00:07:20,800 AN AVA PRACTICES, CHILDREN WHO 180 00:07:20,800 --> 00:07:22,800 HAVE SOME VERBAL CAPACITY ARE 181 00:07:22,800 --> 00:07:23,800 FORCED TO PRIORITIZE THEIR 182 00:07:23,800 --> 00:07:24,720 LIMITED VERBAL COMMUNICATION 183 00:07:24,720 --> 00:07:26,440 WHEN THEY COULD HAVE FULL RANGE 184 00:07:26,440 --> 00:07:26,920 OF COMMUNICATION IF 185 00:07:26,920 --> 00:07:29,120 SIMULTANEOUSLY PROVIDED ACCESS 186 00:07:29,120 --> 00:07:31,520 TO AAC TEACHINGS. 187 00:07:31,520 --> 00:07:34,640 I CALLED A FRIEND WHO'S A 188 00:07:34,640 --> 00:07:36,360 REGISTERED BOARD CERTIFIED 189 00:07:36,360 --> 00:07:40,920 BEHAVIOR ANALYST, BCBA. 190 00:07:40,920 --> 00:07:44,440 THE TRAINED AND CERTIFIED -- WHO 191 00:07:44,440 --> 00:07:45,440 CERTIFIES THERAPISTS IN AVA 192 00:07:45,440 --> 00:07:46,880 THERAPY AND SAID I HAVE TO WORK 193 00:07:46,880 --> 00:07:51,040 WITHIN MY EDUCATION BUT I HAVE 194 00:07:51,040 --> 00:07:52,240 SEEN CHILDREN MAKE MAJOR 195 00:07:52,240 --> 00:07:53,400 COMMUNICATION GAINS WHEN GIVEN 196 00:07:53,400 --> 00:07:56,680 ACCESS TO AAC BOTH IN VERBAL, 197 00:07:56,680 --> 00:07:59,840 VOCAL IN PROMOTE AND GAIN AAC. 198 00:07:59,840 --> 00:08:01,960 HOWEVER, THE BACB DOES NOT HAVE 199 00:08:01,960 --> 00:08:05,920 CURRICULUM AND TRAINING ON AAC. 200 00:08:05,920 --> 00:08:08,360 I HAVE TRIED TO MIMIC WHAT 201 00:08:08,360 --> 00:08:09,920 SPEECH PATHOLOGISTS DO BUT HAVE 202 00:08:09,920 --> 00:08:11,600 TO WORK WITHIN MY TRAINING AND 203 00:08:11,600 --> 00:08:13,960 THERE'S LITTLE AAC TRAINING AND 204 00:08:13,960 --> 00:08:15,640 WISH I HAD ACCESS TO MORE. 205 00:08:15,640 --> 00:08:19,440 IF THE BACB WISHES TO SHOW A 206 00:08:19,440 --> 00:08:21,640 CONSCIOUS EFFORT TOWARD ETHICAL 207 00:08:21,640 --> 00:08:26,240 AND MORAL RESPONSIBE IBLIBLE PRACTICES 208 00:08:26,240 --> 00:08:29,480 THEY NEED TO SHIFT TO AAC 209 00:08:29,480 --> 00:08:33,960 PRACTICES WHEN PROVIDING ACCESS 210 00:08:33,960 --> 00:08:35,920 AND EDUCATION AND NOT ONLY BY 211 00:08:35,920 --> 00:08:38,040 TRAINING THERAPISTS BUT LOOKING 212 00:08:38,040 --> 00:08:41,640 AT THE BENEFITS FOR AACUs WHEN 213 00:08:41,640 --> 00:08:43,160 STUDENTS WHO SHOW LITTLE TO KNOW 214 00:08:43,160 --> 00:08:44,160 PROGRESS OF PREVIOUS 215 00:08:44,160 --> 00:08:44,840 INTERVENTION EFFORTS. 216 00:08:44,840 --> 00:08:47,240 A LONG-TERM STUDY COULD BE DONE 217 00:08:47,240 --> 00:08:48,360 TO EXAMINE THE FUNCTIONAL 218 00:08:48,360 --> 00:08:48,920 COMMUNICATION OUTCOMES OF 219 00:08:48,920 --> 00:08:51,280 STUDENTS WHO OTHERWISE ARE NOT 220 00:08:51,280 --> 00:08:51,800 SHOWING IMPROVEMENTS IN 221 00:08:51,800 --> 00:08:54,640 COMMUNICATION GOALS. 222 00:08:54,640 --> 00:08:56,440 HAVING WORKED DIRECTLY WITH 223 00:08:56,440 --> 00:08:58,640 YOUNG ADULT USERS THEY HAVE 224 00:08:58,640 --> 00:09:00,840 EXPRESSED ACCESS TO AAC HAS 225 00:09:00,840 --> 00:09:02,440 OPENED THE WORLD TO THEM AND A 226 00:09:02,440 --> 00:09:04,080 BELIEVE ALL STUDENTS SHOULD HAVE 227 00:09:04,080 --> 00:09:06,040 ACCESS TO AAC EDUCATION WHEN 228 00:09:06,040 --> 00:09:06,360 BENEFICIAL. 229 00:09:06,360 --> 00:09:11,520 THANK YOU. 230 00:09:11,520 --> 00:09:13,680 >> THANK YOU, STEVIE FOR YOUR 231 00:09:13,680 --> 00:09:15,720 COMMENTS AND FOR BEING HERE. 232 00:09:15,720 --> 00:09:17,960 NEXT WE'LL HEAR FROM LISA 233 00:09:17,960 --> 00:09:24,040 MORGAN. 234 00:09:24,040 --> 00:09:24,840 WELCOME. 235 00:09:24,840 --> 00:09:26,920 >> THANK YOU. 236 00:09:26,920 --> 00:09:28,240 AS AN AUTISTIC SELF-ADVOCATE 237 00:09:28,240 --> 00:09:30,640 DIAGNOSED AT 48 YEARS OLD, I 238 00:09:30,640 --> 00:09:31,600 ROUTINELY EXPERIENCE PEOPLE WHO 239 00:09:31,600 --> 00:09:33,640 DO NOT UNDERSTAND WHAT IT'S LIKE 240 00:09:33,640 --> 00:09:37,880 TO LIVE WITH AUTISM BOTH IN 241 00:09:37,880 --> 00:09:39,480 PROFESSIONAL AND PERSONAL 242 00:09:39,480 --> 00:09:41,440 SITUATIONS YET THESE PEOPLE ARE 243 00:09:41,440 --> 00:09:42,720 STILL CONSIDERED TO BE THE 244 00:09:42,720 --> 00:09:44,120 AUTHORITIES ON AUTISM AND 245 00:09:44,120 --> 00:09:44,640 AUTISTIC PEOPLE. 246 00:09:44,640 --> 00:09:47,040 WHILE AUTISTIC PEOPLE HAVE BEEN 247 00:09:47,040 --> 00:09:47,720 INVITED TO THE CONVERSATION NOW 248 00:09:47,720 --> 00:09:49,840 MORE A DAYS, I ALSO STRONGLY 249 00:09:49,840 --> 00:09:52,400 FEEL WE'RE NOT BEING TAKEN 250 00:09:52,400 --> 00:09:52,840 SERIOUSLY. 251 00:09:52,840 --> 00:09:55,080 I BELIEVE BEING GIVEN AN 252 00:09:55,080 --> 00:09:57,480 INVITATION TO JOIN IN THE 253 00:09:57,480 --> 00:09:58,560 CONVERSATION ENDS THERE WITH US 254 00:09:58,560 --> 00:10:01,840 JUST SITTING AT THE PROVERBIAL 255 00:10:01,840 --> 00:10:04,840 TABLE BUT NOT BEING LISTENED TO 256 00:10:04,840 --> 00:10:06,800 IN ANY MEANINGFUL WAY OR WORSE 257 00:10:06,800 --> 00:10:10,000 BEING GIVEN A PAT ON THE BACK 258 00:10:10,000 --> 00:10:12,800 FOR SHOWING UP AND CAN LOOK LIKE 259 00:10:12,800 --> 00:10:13,800 WE'RE PARTICIPATING BEING PART 260 00:10:13,800 --> 00:10:16,080 OF THE LEGISLATION TO THE MANY 261 00:10:16,080 --> 00:10:17,920 ISSUES -- SOLUTION TO THE MANY 262 00:10:17,920 --> 00:10:18,760 ISSUES IN OUR SOCIETY. 263 00:10:18,760 --> 00:10:21,280 WE MUST BE THE ONES TO DRIVE 264 00:10:21,280 --> 00:10:23,480 RESEARCH PRIORITIES, PARTICIPATE 265 00:10:23,480 --> 00:10:25,320 IN DEVELOPING RESOURCES AND 266 00:10:25,320 --> 00:10:27,120 AFFECT SOCIAL CHANGE AND 267 00:10:27,120 --> 00:10:28,200 COLLABORATION WITH 268 00:10:28,200 --> 00:10:29,920 PROFESSIONALS, RESEARCHERS AND 269 00:10:29,920 --> 00:10:33,400 OTHER STAKEHOLDERS. 270 00:10:33,400 --> 00:10:38,680 PROFESSIONALS MUST LISTEN IN 271 00:10:38,680 --> 00:10:41,840 ORDER TO COLLABORATE AND MUST BE 272 00:10:41,840 --> 00:10:44,840 VIEWED AS A VALUABLE PART TO 273 00:10:44,840 --> 00:10:45,840 DEVELOPING SOLUTIONS THAT MAKE A 274 00:10:45,840 --> 00:10:50,760 DIFFERENCE IN THE QUALITY OF OUR 275 00:10:50,760 --> 00:10:53,000 LIVES. 276 00:10:53,000 --> 00:10:53,920 WE KNOW WHAT WORKS AND DOESN'T 277 00:10:53,920 --> 00:10:55,680 WORK AND OUR EXPERIENCES MUST BE 278 00:10:55,680 --> 00:10:57,840 THE MOST IMPORTANT PART OF 279 00:10:57,840 --> 00:10:58,880 FINDING SOLUTIONS. 280 00:10:58,880 --> 00:11:00,760 NO AMOUNT OF BOOK LEARNING, 281 00:11:00,760 --> 00:11:02,440 TRAINING OR ANY NUMBER OF YEARS 282 00:11:02,440 --> 00:11:06,920 OF EXPERIENCE IN WORKING 283 00:11:06,920 --> 00:11:09,880 DIRECTLY WITH AUTISTIC PEOPLE 284 00:11:09,880 --> 00:11:15,200 CAN COME CLOSE TO THE KNOWLEDGE 285 00:11:15,200 --> 00:11:17,160 LIVING WITH AUTISM AND BEING 286 00:11:17,160 --> 00:11:18,800 AUTISTIC AND THOUGH OUR 287 00:11:18,800 --> 00:11:20,640 INVITATION WAS LATE COMING WE 288 00:11:20,640 --> 00:11:24,680 CAN MAKE UP FOR LOST TIME WITH 289 00:11:24,680 --> 00:11:28,000 AUTISTIC PEOPLE ACCEPTED AS 290 00:11:28,000 --> 00:11:28,560 KNOWLEDGEABLE COLLABORATORS. 291 00:11:28,560 --> 00:11:28,840 THANK YOU. 292 00:11:28,840 --> 00:11:31,200 >> THANK YOU VERY MUCH, LISA. 293 00:11:31,200 --> 00:11:36,200 THANKS FOR BEING HERE. 294 00:11:36,200 --> 00:11:37,040 NEXT, WE'LL HEAR FROM BOB 295 00:11:37,040 --> 00:11:44,240 WILLIAMS. 296 00:11:44,240 --> 00:11:48,760 >> THANK YOU AND GOOD AFTERNOON. 297 00:11:48,760 --> 00:11:53,120 AS WAS SAID I'M BOB WILLIAMS 298 00:11:53,120 --> 00:11:55,840 POLICY DIRECTOR OF COMMUNICATION 299 00:11:55,840 --> 00:11:56,880 FIRST THE ONLY ORGANIZATION BY 300 00:11:56,880 --> 00:12:01,160 AND FOR THE ESTIMATED 5 MILLION 301 00:12:01,160 --> 00:12:03,200 PEOPLE IN THE U.S. WHO HAVE 302 00:12:03,200 --> 00:12:06,080 SIGNIFICANT SPEECH-RELATED 303 00:12:06,080 --> 00:12:08,840 DISABILITIES INCLUDING 30% TO 304 00:12:08,840 --> 00:12:11,640 40% OF AUTISTIC PEOPLE BEFORE 305 00:12:11,640 --> 00:12:12,560 CO-FOUNDING COMMUNICATION FIRST, 306 00:12:12,560 --> 00:12:18,600 I WAS A SENIOR EXECUTIVE AT HHS. 307 00:12:18,600 --> 00:12:20,320 EARLIER I WORKED ON CLOSING AN 308 00:12:20,320 --> 00:12:20,640 INSTITUTION. 309 00:12:20,640 --> 00:12:23,080 THANK YOU FOR INVITING US TO 310 00:12:23,080 --> 00:12:27,720 COME COMMENT ON THE CRITICAL 311 00:12:27,720 --> 00:12:28,040 CHALLENGES. 312 00:12:28,040 --> 00:12:28,840 ADDRESSING COMMUNICATION NEEDS 313 00:12:28,840 --> 00:12:32,200 OF AUTISTIC PEOPLE, WE SUBMITTED 314 00:12:32,200 --> 00:12:36,640 WRITTEN COMMENTS ON APRIL 1, 315 00:12:36,640 --> 00:12:39,040 2022 DUE TO THE TIME LIMIT I'LL 316 00:12:39,040 --> 00:12:40,280 MAKE JUST TWO POINTS TODAY. 317 00:12:40,280 --> 00:12:44,320 FIRST, LIKE SO MANY OF MY 318 00:12:44,320 --> 00:12:45,440 NON-SPEAKING FRIENDS AND 319 00:12:45,440 --> 00:12:49,560 COLLEAGUES, I WAS REGARDED AS, 320 00:12:49,560 --> 00:12:52,840 QUOTE, SO SEVERELY AND 321 00:12:52,840 --> 00:12:55,920 PROFOUNDLY DISABLED AND QUOTE, 322 00:12:55,920 --> 00:12:57,840 MY PARENTS WERE TOLD TO DROP ME 323 00:12:57,840 --> 00:13:02,840 AT THE INSTITUTION AND NEVER 324 00:13:02,840 --> 00:13:09,600 RETURN LUCKILY IN THE 1960s I 325 00:13:09,600 --> 00:13:11,920 SOMEHOW WAS ABLE TO WAS ABLE TO 326 00:13:11,920 --> 00:13:13,920 TYPE AND GET A GOOD EDUCATION 327 00:13:13,920 --> 00:13:17,840 AND GO ON TO COLLEGE. 328 00:13:17,840 --> 00:13:20,240 TODAY HOWEVER, WE FIND YOUNG 329 00:13:20,240 --> 00:13:24,800 PEOPLE AND ADULTS ARE DENIED THE 330 00:13:24,800 --> 00:13:27,680 OPPORTUNITIES IRONICALLY THAT IS 331 00:13:27,680 --> 00:13:31,240 MEANT TO BE THEIR CIVIL RIGHTS. 332 00:13:31,240 --> 00:13:33,720 SECOND, MANY STILL ARE STAMPED 333 00:13:33,720 --> 00:13:37,400 WITH THE SAME SEVERE AND 334 00:13:37,400 --> 00:13:41,880 PROFOUND BRAND. 335 00:13:41,880 --> 00:13:44,840 HAVING WORKED WITHIN THIS 336 00:13:44,840 --> 00:13:46,160 LABELLED MY EXPERIENCES AND 337 00:13:46,160 --> 00:13:48,840 BECOMES A JUSTIFICATION FOR 338 00:13:48,840 --> 00:13:50,760 GIVING UP ON SOMEONE. 339 00:13:50,760 --> 00:13:52,480 I AM A PAST BOARD MEMBER OF DASH 340 00:13:52,480 --> 00:13:54,800 WHICH REMOVED THE TERM FROM ITS 341 00:13:54,800 --> 00:13:59,920 NAME IN 1980. 342 00:13:59,920 --> 00:14:03,840 BECAUSE IT DEHUMANIZED THOSE 343 00:14:03,840 --> 00:14:05,960 WHOSE MOST BASIC RIGHT IS TO BE 344 00:14:05,960 --> 00:14:09,520 RECOGNIZED AS HUMAN BEINGS IF 345 00:14:09,520 --> 00:14:12,640 THE IACC IS CONSIDERING 346 00:14:12,640 --> 00:14:13,240 RECOMMENDING CERTAIN TERMINOLOGY 347 00:14:13,240 --> 00:14:17,080 WE USE WE STRONGLY URGE IT DOES 348 00:14:17,080 --> 00:14:18,840 TO IN PARTNERSHIP WITH 349 00:14:18,840 --> 00:14:20,160 NON-SPEAKING PEOPLE AND THEIR 350 00:14:20,160 --> 00:14:20,840 ORGANIZATIONS. 351 00:14:20,840 --> 00:14:23,080 IF YOU HAVE QUESTIONS ON OUR 352 00:14:23,080 --> 00:14:25,400 WRITTEN COMMENTS OR MY COMMENTS 353 00:14:25,400 --> 00:14:28,720 TODAY, I CAN ANSWER NOW OR IN 354 00:14:28,720 --> 00:14:30,840 WRITING OR IF THERE'S ANY 355 00:14:30,840 --> 00:14:36,800 ASSISTANCE WE CAN PROVIDE, WE 356 00:14:36,800 --> 00:14:39,320 WOULD BE GLAD TO DO SO. 357 00:14:39,320 --> 00:14:41,400 >> THANK YOU, BOB AND WE'LL HAVE 358 00:14:41,400 --> 00:14:42,640 A DISCUSSION PERIOD AFTER ALL 359 00:14:42,640 --> 00:14:44,040 THE COMMENTS AND PEOPLE ARE 360 00:14:44,040 --> 00:14:48,080 WELCOME TO ASK ANY OF OUR 361 00:14:48,080 --> 00:14:49,240 COMMENTERS QUESTIONS OR MAKE 362 00:14:49,240 --> 00:14:50,880 COMMENTS ON THEIR COMMENTS. 363 00:14:50,880 --> 00:14:53,160 NEXT WE'LL HEAR FROM EDLYN PENA. 364 00:14:53,160 --> 00:14:55,800 IT'S A PLEASURE TO WELCOME YOU 365 00:14:55,800 --> 00:14:57,840 BACK AS A FORMER MEMBER OF THE 366 00:14:57,840 --> 00:14:59,160 IACC TO GIVE COMMENTS TODAY. 367 00:14:59,160 --> 00:15:01,480 >> THANK YOU, DR. DANIELS, I 368 00:15:01,480 --> 00:15:03,560 APPRECIATE IT. 369 00:15:03,560 --> 00:15:05,840 MY NAME IS DR. EDLYN PENA A 370 00:15:05,840 --> 00:15:07,760 PROFESSOR AT CAL LUTHERAN 371 00:15:07,760 --> 00:15:08,480 UNIVERSITY AND FROM THE 372 00:15:08,480 --> 00:15:09,040 COMMUNICATION CENTER. 373 00:15:09,040 --> 00:15:12,640 I SERVED ON THE IACC FROM 2016 374 00:15:12,640 --> 00:15:13,640 TO 2020. 375 00:15:13,640 --> 00:15:16,080 AS THE EDITOR AND AUTHOR OF THE 376 00:15:16,080 --> 00:15:17,520 BOOKS COMMUNICATION ALTERNATIVES 377 00:15:17,520 --> 00:15:20,440 IN AUTISM AND LEADERS AROUND ME, 378 00:15:20,440 --> 00:15:23,080 I'M THRILLED IACC HAS DECIDED TO 379 00:15:23,080 --> 00:15:26,240 FOCUS ON SUPPORT BEING 380 00:15:26,240 --> 00:15:27,640 AUGMENTATIVE AND ALTERNATIVE 381 00:15:27,640 --> 00:15:29,400 COMMUNICATION AAC AMONG 382 00:15:29,400 --> 00:15:30,840 NON-SPEAKING AND MINIMALLY 383 00:15:30,840 --> 00:15:31,560 SPEAKING INDIVIDUAL. 384 00:15:31,560 --> 00:15:33,720 ONE OF THE MAJOR DEBATES IN THE 385 00:15:33,720 --> 00:15:36,720 AAC WORLD IS WHETHER PARENTS AND 386 00:15:36,720 --> 00:15:37,440 PRACTITIONERS SHOULD SUPPORT 387 00:15:37,440 --> 00:15:39,600 TEXT-BASED METHODS THAT REQUIRE 388 00:15:39,600 --> 00:15:41,360 A ONE-ON-ONE COMMUNICATION 389 00:15:41,360 --> 00:15:43,680 PARTNER TO PROMPT AND SUPPORT A 390 00:15:43,680 --> 00:15:47,040 MINIMALLY SPEAKING INDIVIDUAL TO 391 00:15:47,040 --> 00:15:48,760 COMMUNICATE. 392 00:15:48,760 --> 00:15:49,880 SOME OF THE COMMON METHODS 393 00:15:49,880 --> 00:15:52,160 INCLUDE FACILITATED 394 00:15:52,160 --> 00:15:54,560 COMMUNICATION, FC FOR SHORT, 395 00:15:54,560 --> 00:15:57,320 RAPID PROMPTING METHOD, RPM AND 396 00:15:57,320 --> 00:15:59,600 SPELLING TO COMMUNICATE, STC. 397 00:15:59,600 --> 00:16:01,960 THE CHIEF QUESTION DEFINING THE 398 00:16:01,960 --> 00:16:03,440 CONTROVERSY IS WHO IS THE AUTHOR 399 00:16:03,440 --> 00:16:05,840 OF THE MESSAGE BEING TYPED? 400 00:16:05,840 --> 00:16:07,840 THE FACILITATOR, COMMUNICATION 401 00:16:07,840 --> 00:16:10,240 PARTNER OR IS IT STUDENT OR 402 00:16:10,240 --> 00:16:12,200 COMMUNICATOR? 403 00:16:12,200 --> 00:16:15,320 THUS FAR, EXPERIMENTAL STUDIES 404 00:16:15,320 --> 00:16:17,840 INDICATE THAT TYPED RESPONSES 405 00:16:17,840 --> 00:16:20,000 USING FC METHODS WERE EITHER 406 00:16:20,000 --> 00:16:21,640 INFLUENCED BY THE FACILITATOR OR 407 00:16:21,640 --> 00:16:23,640 THE COMMUNICATORS WERE NOT ABLE 408 00:16:23,640 --> 00:16:25,920 TO INDEPENDENTLY PASS MESSAGES. 409 00:16:25,920 --> 00:16:28,120 IN SOME CASES THE BAD WRAP THE 410 00:16:28,120 --> 00:16:30,280 METHODS HAVE RECEIVED IS FAIR. 411 00:16:30,280 --> 00:16:32,800 IN OTHER CASES IT IS NOT. 412 00:16:32,800 --> 00:16:34,640 THERE'S NO QUESTION THAT THESE 413 00:16:34,640 --> 00:16:36,520 FORMS OF COMMUNICATION CAN BE 414 00:16:36,520 --> 00:16:38,000 SUBJECT TO INFLUENCE. 415 00:16:38,000 --> 00:16:41,040 YET, THE RESEARCH STUDIES ALONE 416 00:16:41,040 --> 00:16:44,000 OFFER AN INCOMPLETE PICTURE. 417 00:16:44,000 --> 00:16:45,160 THERE'S EVIDENCE OF STUDENTS AND 418 00:16:45,160 --> 00:16:46,440 INDIVIDUALS WHO USING THE 419 00:16:46,440 --> 00:16:48,240 VARIOUS METHODS AND BECOME 420 00:16:48,240 --> 00:16:49,880 INDEPENDENT IN THEIR 421 00:16:49,880 --> 00:16:50,240 COMMUNICATION. 422 00:16:50,240 --> 00:16:52,840 THAT IS, THEY'RE COMMUNICATION 423 00:16:52,840 --> 00:16:54,800 PARTNER SITS OR STANDS NEAR THEM 424 00:16:54,800 --> 00:16:57,560 BUT DOES NOT HOLD THE LETTER 425 00:16:57,560 --> 00:16:58,640 BOARD OR PROVIDE PHYSICAL 426 00:16:58,640 --> 00:16:58,920 SUPPORT. 427 00:16:58,920 --> 00:17:01,960 I WITNESSED THIS MYSELF. 428 00:17:01,960 --> 00:17:05,960 IN ADDICTION THERE'S DOCUMENT OF 429 00:17:05,960 --> 00:17:08,120 INDIVIDUALS WHO USE METHODS WHO 430 00:17:08,120 --> 00:17:09,800 HAVE COMMUNICATED MEDICAL 431 00:17:09,800 --> 00:17:12,520 CONDITIONS, EVEN ONES THAT LED 432 00:17:12,520 --> 00:17:16,000 TO DIAGNOSES AS SEVERE AS CANCER 433 00:17:16,000 --> 00:17:19,160 AND YET CRITICS REFUSE TO ADMIT 434 00:17:19,160 --> 00:17:22,080 WHAT IS BEING TYPED IN THE 435 00:17:22,080 --> 00:17:23,200 CIRCUMSTANCES IS AUTHENTIC 436 00:17:23,200 --> 00:17:23,840 COMMUNICATION FROM THE PERSON 437 00:17:23,840 --> 00:17:25,520 TYPING OR SPELLING. 438 00:17:25,520 --> 00:17:29,560 I IMPLORE ANY RESEARCHERS, TASK 439 00:17:29,560 --> 00:17:32,080 FORCES OR COMMITTEES TO EXPLORE 440 00:17:32,080 --> 00:17:33,040 QUESTIONS BEYOND THE 441 00:17:33,040 --> 00:17:35,040 COMMUNICATORS AUTHORSHIP. 442 00:17:35,040 --> 00:17:36,520 FIRST, WHAT ARE THE 443 00:17:36,520 --> 00:17:37,720 CIRCUMSTANCES UNDER WHICH A 444 00:17:37,720 --> 00:17:39,680 COMMUNICATOR BECOMES INDEPENDENT 445 00:17:39,680 --> 00:17:41,920 IN THEIR COMMUNICATION? 446 00:17:41,920 --> 00:17:45,840 WHAT SORT OF SUPPORT, FADING OF 447 00:17:45,840 --> 00:17:47,800 PROMPT, USER PROFILES, 448 00:17:47,800 --> 00:17:50,840 COMMUNICATION PARTNER TRAINING, 449 00:17:50,840 --> 00:17:51,400 ETCETE 450 00:17:51,400 --> 00:17:53,240 ETCETERA, LEAD TO INDIVIDUALS 451 00:17:53,240 --> 00:17:54,800 BECOMING PROGRESSIVELY 452 00:17:54,800 --> 00:17:56,000 INDEPENDENT. 453 00:17:56,000 --> 00:17:57,640 A LONGITUDINAL STUDY WOULD BE 454 00:17:57,640 --> 00:17:59,280 REQUIRED SINCE IT TAKES YEARS TO 455 00:17:59,280 --> 00:17:59,720 BECOME INDEPENDENT. 456 00:17:59,720 --> 00:18:03,840 SECOND, NON-SPEAKING AND 457 00:18:03,840 --> 00:18:04,920 MINIMALLY SPEAKING AUTISTIC 458 00:18:04,920 --> 00:18:05,920 INDIVIDUALS HAVE CHALLENGES AND 459 00:18:05,920 --> 00:18:07,680 SYMPTOMS THAT PLAY A ROLE IN THE 460 00:18:07,680 --> 00:18:09,200 DYNAMICS OF COMMUNICATING ON KEY 461 00:18:09,200 --> 00:18:11,440 BOARDS AND LETTER BOARDS. 462 00:18:11,440 --> 00:18:12,240 RESEARCH MUST CONTINUE TO 463 00:18:12,240 --> 00:18:15,400 UNCOVER ANSWERS TO SENSORY 464 00:18:15,400 --> 00:18:16,240 DIFFERENCES, MOTOR PLANNING 465 00:18:16,240 --> 00:18:17,240 DIFFERENCES AND ANXIETY. 466 00:18:17,240 --> 00:18:18,840 ALL OF WHICH HAVE BEEN 467 00:18:18,840 --> 00:18:21,960 DOCUMENTED TO SOME EXTENT IN THE 468 00:18:21,960 --> 00:18:23,680 AUTISM LITERATURE. 469 00:18:23,680 --> 00:18:25,480 THE RELATIONSHIP AMONG THESE 470 00:18:25,480 --> 00:18:28,000 EXPERIENCES AND ALTERNATIVE 471 00:18:28,000 --> 00:18:29,920 COMMUNICATION IS NOTE YET WELL 472 00:18:29,920 --> 00:18:30,840 UNDERSTOOD. 473 00:18:30,840 --> 00:18:32,840 DOING SO REQUIRES RESEARCHERS 474 00:18:32,840 --> 00:18:33,920 AND PRACTITIONERS TO CONSIDER 475 00:18:33,920 --> 00:18:35,960 MULTIPLE SOURCES OF DATA, FOR 476 00:18:35,960 --> 00:18:37,520 EXAMPLE, INTERVIEWS, NARRATIVES, 477 00:18:37,520 --> 00:18:40,040 FIELD NOTES TO GIVE US MORE 478 00:18:40,040 --> 00:18:41,760 HOLISTIC PICTURE BEYOND WHAT CAN 479 00:18:41,760 --> 00:18:43,520 BE REVEALED THROUGH QUANTITATIVE 480 00:18:43,520 --> 00:18:45,960 METHODS WITHIN THE CONTEXT OF 481 00:18:45,960 --> 00:18:48,080 EXPERIMENTAL STUDIES. 482 00:18:48,080 --> 00:18:49,360 ENGAGING IN RESEARCH STUDIES TO 483 00:18:49,360 --> 00:18:51,440 ADDRESS UNANSWERED QUESTIONS 484 00:18:51,440 --> 00:18:53,920 WILL HELP THE AUTISM COMMUNITY 485 00:18:53,920 --> 00:18:55,080 DETERMINE THE CONDITIONS UNDER 486 00:18:55,080 --> 00:18:59,040 WHICH FC, RPM, OR OTHER 487 00:18:59,040 --> 00:19:01,760 TEXT-BASED AAC METHODS WHEN DONE 488 00:19:01,760 --> 00:19:04,760 ETHICALLY AND WITH RIGOR CAN BE 489 00:19:04,760 --> 00:19:05,400 SUCCESSFUL. 490 00:19:05,400 --> 00:19:08,280 FURTHER, THE ANSWER TO THESE 491 00:19:08,280 --> 00:19:09,800 QUESTIONS WILL ENABLE THE 492 00:19:09,800 --> 00:19:10,720 COMMUNITIES THAT USE THESE 493 00:19:10,720 --> 00:19:13,320 METHODS TO MOVE PAST THE 494 00:19:13,320 --> 00:19:14,480 QUESTION OF AUTHORSHIP TOWARD 495 00:19:14,480 --> 00:19:17,440 ADDRESSING SENSORY, MOTOR AND 496 00:19:17,440 --> 00:19:19,080 ANXIETY CHALLENGES THAT IMPACT 497 00:19:19,080 --> 00:19:20,120 COMMUNICATION AS WELL AS I AM 498 00:19:20,120 --> 00:19:21,160 PROVING TRAINING OF 499 00:19:21,160 --> 00:19:23,840 COMMUNICATORS AND FACILITATORS. 500 00:19:23,840 --> 00:19:25,360 SO RATHER THAN DETERMINING THAT 501 00:19:25,360 --> 00:19:27,840 A FORM OF COMMUNICATION WHICH IS 502 00:19:27,840 --> 00:19:29,320 SUBJECT TO INFLUENCE IS 503 00:19:29,320 --> 00:19:30,840 THEREFORE DANGEROUS AND SHOULD 504 00:19:30,840 --> 00:19:32,560 THUS BE STOPPED, PROFESSIONALS 505 00:19:32,560 --> 00:19:33,840 SHOULD BE COMMITTED TO 506 00:19:33,840 --> 00:19:34,840 UNDERSTANDING THE WAYS IN WHICH 507 00:19:34,840 --> 00:19:36,840 TO REDUCE INFLUENCE AND TO 508 00:19:36,840 --> 00:19:37,960 SUPPORT THE PROGRESSIVE 509 00:19:37,960 --> 00:19:39,480 INDEPENDENCE AND RELIABILITY OF 510 00:19:39,480 --> 00:19:42,160 THE COMMUNICATOR. 511 00:19:42,160 --> 00:19:45,160 THANK YOU FOR HAVING ME. 512 00:19:45,160 --> 00:19:46,400 >> THANK YOU VERY MUCH, EDLYN 513 00:19:46,400 --> 00:19:48,120 FOR THAT COMMENT AND THANK YOU 514 00:19:48,120 --> 00:19:51,840 ALL FOR BEING HERE WITH US TODAY 515 00:19:51,840 --> 00:19:53,000 AND SHARING THESE COMMENTS AND 516 00:19:53,000 --> 00:19:53,840 WE LOOK FORWARD TO DISCUSSION 517 00:19:53,840 --> 00:19:56,160 AFTER WE GO THROUGH THE WRITTEN 518 00:19:56,160 --> 00:19:56,800 COMMENTS. 519 00:19:56,800 --> 00:19:58,560 SO AT THIS TIME I'M GOING SHARE 520 00:19:58,560 --> 00:20:01,000 WITH YOU THE SUMMARY OF WRITTEN 521 00:20:01,000 --> 00:20:02,440 PUBLIC COMMENTS. 522 00:20:02,440 --> 00:20:06,800 WE HAD THE MOST ROBUST WRITTEN 523 00:20:06,800 --> 00:20:09,640 PUBLIC COMMENT RECEIPT WE'VE 524 00:20:09,640 --> 00:20:11,440 EVER HAD THIS TIME AROUND. 525 00:20:11,440 --> 00:20:17,320 WE HAD 271 WRITTEN PUBLIC 526 00:20:17,320 --> 00:20:24,120 COMMENTS THAT CAME IN FOR THIS 527 00:20:24,120 --> 00:20:26,640 MEETING AND WEREN'T PART OF A 528 00:20:26,640 --> 00:20:27,920 FLASH SOLICITATION AND I CAN'T 529 00:20:27,920 --> 00:20:29,880 SHARE ALL THE NAMES BUT SHARE 530 00:20:29,880 --> 00:20:31,640 THE DIFFERENT TOPICS AND WE 531 00:20:31,640 --> 00:20:32,520 DIVIDED THE COMMENTS INTO TOPICS 532 00:20:32,520 --> 00:20:35,840 TO MAKE IT EASIER AND ANYONE 533 00:20:35,840 --> 00:20:36,800 WHOSE WATCHING ONLINE YOU CAN 534 00:20:36,800 --> 00:20:39,600 SEE THE FULL TEXT OF THE 535 00:20:39,600 --> 00:20:40,240 COMMENTS IN THE MEETING 536 00:20:40,240 --> 00:20:42,760 MATERIALS THAT ARE POSTED 537 00:20:42,760 --> 00:20:43,240 ONLINE. 538 00:20:43,240 --> 00:20:45,840 SO FIRST WE HAD 153 COMMENTS 539 00:20:45,840 --> 00:20:47,320 THAT WERE ON RESEARCH AND 540 00:20:47,320 --> 00:20:49,960 SERVICE NEEDS, RESOURCES AND 541 00:20:49,960 --> 00:21:04,560 POLICY IMPLICATIONS. 542 00:21:04,560 --> 00:21:05,920 THIS IS THE SECOND PAGE OF NAMES 543 00:21:05,920 --> 00:21:09,920 AND THAT'S THE THIRD PAGE OF 544 00:21:09,920 --> 00:21:14,640 NAMES FOR THAT PARTICULAR TOPIC. 545 00:21:14,640 --> 00:21:15,800 WE HAD 43 COMMENTS ABOUT 546 00:21:15,800 --> 00:21:16,760 CONCERNS ON MEDICAL PRACTICES 547 00:21:16,760 --> 00:21:21,000 AND THE NAMES ARE LISTED HERE. 548 00:21:21,000 --> 00:21:23,840 WE HAD 21 COMMENTS ON THE ROLE 549 00:21:23,840 --> 00:21:29,880 OF THE IACC AND THE FRLTH AND -- 550 00:21:29,880 --> 00:21:31,440 FEDERAL GOVERNMENT AND 22 551 00:21:31,440 --> 00:21:32,120 COMMENTS ON RESEARCH FOR SUPPORT 552 00:21:32,120 --> 00:21:36,040 FOR ADULTS ON THE AUTISM 553 00:21:36,040 --> 00:21:38,840 SPECTRUM AND THE DIRECT NEEDS OF 554 00:21:38,840 --> 00:21:39,480 PROFESSIONALS IN THE WORKFORCE, 555 00:21:39,480 --> 00:21:45,880 FOUR COMMENTS PERTAINING TO 556 00:21:45,880 --> 00:21:47,640 EMPLOYMENT EIGHT COMMENTS TO 557 00:21:47,640 --> 00:21:50,080 POTENTIAL CAUSES OF AUTISM, FIVE 558 00:21:50,080 --> 00:21:52,440 COMMENTS ON THE NEEDS OF 559 00:21:52,440 --> 00:21:53,480 AUTISTIC INDIVIDUALS WITH HIGH 560 00:21:53,480 --> 00:21:56,000 SUPPORT NEEDS AND 12 COMMENTS ON 561 00:21:56,000 --> 00:22:00,840 INCREASING AUTISM ACCEPTANCE AND 562 00:22:00,840 --> 00:22:01,760 REDUCING STIGMA. 563 00:22:01,760 --> 00:22:03,360 THOSE WERE ALL THE COMMENTS. 564 00:22:03,360 --> 00:22:05,960 SO NOW WE HAVE SOME TIME FOR 565 00:22:05,960 --> 00:22:07,920 IACC MEMBERS TO DISCUSS THE 566 00:22:07,920 --> 00:22:08,200 COMMENTS. 567 00:22:08,200 --> 00:22:13,960 I WOULD ENCOURAGE YOU TO KEEP 568 00:22:13,960 --> 00:22:17,920 YOUR COMMENTS SOMEWHAT SHORT SO 569 00:22:17,920 --> 00:22:20,960 WE CAN GET TO EVERYONE. 570 00:22:20,960 --> 00:22:24,960 GO AHEAD AND ALLISON I SEE YOUR 571 00:22:24,960 --> 00:22:36,400 HAND RAISED. 572 00:22:36,400 --> 00:22:38,680 >> HELLO. 573 00:22:38,680 --> 00:22:41,880 I'M FROM THE SOCIAL SECURITY 574 00:22:41,880 --> 00:22:44,840 ADMINISTRATION AND I'M 575 00:22:44,840 --> 00:22:45,880 RESPONDING TO THE PRESENTATION 576 00:22:45,880 --> 00:22:49,840 AT THE LAST IACC MEETING BY DENA 577 00:22:49,840 --> 00:22:51,200 GASNER. 578 00:22:51,200 --> 00:22:53,440 TAKING STEPS TO BETTER 579 00:22:53,440 --> 00:22:56,240 ACCOMMODATE THOSE ON THE 580 00:22:56,240 --> 00:22:57,840 SPECTRUM. 581 00:22:57,840 --> 00:23:00,840 WE PASSED THEM ON TO THE 582 00:23:00,840 --> 00:23:01,920 APPROPRIATE INDIVIDUALS AND 583 00:23:01,920 --> 00:23:04,840 WE'VE BEEN WORKING ON 584 00:23:04,840 --> 00:23:07,160 EQUITY-RELATED ISSUES AND TODAY 585 00:23:07,160 --> 00:23:08,040 THE SOCIAL SECURITY 586 00:23:08,040 --> 00:23:08,640 ADMINISTRATION RELEASED THE 587 00:23:08,640 --> 00:23:10,680 FIRST EQUITY ACTION PLAN 588 00:23:10,680 --> 00:23:12,360 SUPPORTING PRESIDENT BIDEN'S 589 00:23:12,360 --> 00:23:13,840 WHOLE OF GOVERNMENT EQUITY 590 00:23:13,840 --> 00:23:15,760 AGENDA TO ADVANCE EQUITY, CIVIL 591 00:23:15,760 --> 00:23:18,760 RIGHTS, RACIAL JUSTICE AND EQUAL 592 00:23:18,760 --> 00:23:21,320 OPPORTUNITY FOR ALL. 593 00:23:21,320 --> 00:23:23,680 THE ACTING COMMISSIONER STATED 594 00:23:23,680 --> 00:23:24,800 SYSTEMIC BARRIERS MAY PREVENT 595 00:23:24,800 --> 00:23:25,960 PEOPLE WHO NEED OUR PROGRAMS THE 596 00:23:25,960 --> 00:23:27,840 MOST FROM ACCESSING THEM AND 597 00:23:27,840 --> 00:23:29,400 EQUITY ACTION PLAN WILL HELP TO 598 00:23:29,400 --> 00:23:31,160 REDUCE THE BARRIERS AND ENSURE 599 00:23:31,160 --> 00:23:33,880 PEOPLE HAVE ACCESS TO OUR 600 00:23:33,880 --> 00:23:34,440 SERVICES. 601 00:23:34,440 --> 00:23:36,800 SO I WANTED YOU TO KNOW WE HEAR 602 00:23:36,800 --> 00:23:38,320 YOU AND WE ARE ACTIVELY WORKING 603 00:23:38,320 --> 00:23:42,040 TO MAKE THINGS BETTER. 604 00:23:42,040 --> 00:23:49,440 THANK YOU SO MUCH. 605 00:23:49,440 --> 00:23:52,680 >> WHEN DR. HEMSMER WAS HERE WE 606 00:23:52,680 --> 00:23:53,840 HAD QUESTIONS WE WEREN'T ABLE TO 607 00:23:53,840 --> 00:23:55,520 GET TO AND PROVIDED ANSWERS TO 608 00:23:55,520 --> 00:23:57,840 THOSE PROVIDED BY SSA IN THE 609 00:23:57,840 --> 00:23:59,880 MEETING MATERIALS. 610 00:23:59,880 --> 00:24:01,240 YOU'LL FIND THEM IN THE ROUND 611 00:24:01,240 --> 00:24:01,920 ROBIN SECTION. 612 00:24:01,920 --> 00:24:03,440 THANK YOU SO MUCH AND WE'LL BE 613 00:24:03,440 --> 00:24:05,800 SURE TO ADD THAT UPDATE TO THE 614 00:24:05,800 --> 00:24:06,520 FEDERAL NEWS SECTION OF THE IACC 615 00:24:06,520 --> 00:24:07,080 WEBSITE AFTER THE MEETING. 616 00:24:07,080 --> 00:24:13,920 THANK YOU. 617 00:24:13,920 --> 00:24:17,600 NEXT, DO WE HAVE MORE COMMENTS 618 00:24:17,600 --> 00:24:23,600 THE MEMBERS OF THE IACC. 619 00:24:23,600 --> 00:24:23,800 DENA. 620 00:24:23,800 --> 00:24:29,280 >> I NOTICED A PATTERN WHERE 621 00:24:29,280 --> 00:24:30,680 PEOPLE WERE CALLING FOR MORE 622 00:24:30,680 --> 00:24:32,400 PEOPLE ON THE SPECTRUM TO BE ON 623 00:24:32,400 --> 00:24:33,200 THE IACC. 624 00:24:33,200 --> 00:24:36,800 I'M NOT SURE PEOPLE UNDERSTAND 625 00:24:36,800 --> 00:24:39,320 THAT THE IACC INVITES AGENCY 626 00:24:39,320 --> 00:24:41,880 REPRESENTATIVES BUT WE DON'T GET 627 00:24:41,880 --> 00:24:50,200 TO IDENTIFY WHO THEY WILL BE 628 00:24:50,200 --> 00:24:52,360 THOUGH MANY ARE PEOPLE ON THE 629 00:24:52,360 --> 00:24:53,880 SPECTRUM OR DIRECT RELATIVES OF 630 00:24:53,880 --> 00:24:54,920 PEOPLE ON THE SPECTRUM. 631 00:24:54,920 --> 00:24:56,600 I THOUGHT IT WOULD BE GOOD TO 632 00:24:56,600 --> 00:24:57,880 GIVE AN OPPORTUNITY TO 633 00:24:57,880 --> 00:25:00,840 UNDERSTAND HOW THE IACC IS 634 00:25:00,840 --> 00:25:01,120 CONSTRUCTED. 635 00:25:01,120 --> 00:25:02,840 SORRY TO CATCH YOU COLD. 636 00:25:02,840 --> 00:25:05,160 I SHOULD HAVE SENT IT LAST NIGHT 637 00:25:05,160 --> 00:25:08,280 BUT I HAD IT IN MY NOTES AND 638 00:25:08,280 --> 00:25:12,720 FORGOT TO ADDRESS IT. 639 00:25:12,720 --> 00:25:15,080 >> THERE'S GUIDANCE ON MEMBERS 640 00:25:15,080 --> 00:25:17,640 WE'RE SUPPOSED TO INCLUDE AND 641 00:25:17,640 --> 00:25:18,640 THAT INCLUDES AUTISTIC 642 00:25:18,640 --> 00:25:19,920 INDIVIDUALS, PARENTS AND FAMILY 643 00:25:19,920 --> 00:25:23,240 MEMBERS AND LEADERS OF NATIONAL 644 00:25:23,240 --> 00:25:24,440 SERVICES AND SUPPORTS 645 00:25:24,440 --> 00:25:24,960 ORGANIZATIONS RESEARCH 646 00:25:24,960 --> 00:25:25,520 ORGANIZATIONS AND ADVOCACY 647 00:25:25,520 --> 00:25:32,920 ORGANIZATIONS. 648 00:25:32,920 --> 00:25:34,840 THOSE GROUPS ARE DIVIDED INTO 649 00:25:34,840 --> 00:25:36,600 THREE HOWEVER, MANY WEAR MORE 650 00:25:36,600 --> 00:25:41,040 THAN ONE HAT AND DENA IS AN 651 00:25:41,040 --> 00:25:42,240 AUTISTIC SELF-ADVOCATE AS WELL 652 00:25:42,240 --> 00:25:44,360 AS SOMEBODY WHO HAS A CHILD OR 653 00:25:44,360 --> 00:25:48,280 AN ADULT CHILD ON THE SPECTRUM. 654 00:25:48,280 --> 00:25:49,440 SOME ARE BOTH PARENTS AND 655 00:25:49,440 --> 00:25:53,840 ADVOCATES OR PARENTS AND 656 00:25:53,840 --> 00:25:54,640 RESEARCHERS OR AUTISTIC 657 00:25:54,640 --> 00:25:56,160 INDIVIDUALS AND ADVOCATES IN 658 00:25:56,160 --> 00:25:56,840 ORGANIZATIONS. 659 00:25:56,840 --> 00:25:58,040 THERE'S MANY WAYS PEOPLE WHERE 660 00:25:58,040 --> 00:26:01,440 MULTIPLE HATS. 661 00:26:01,440 --> 00:26:02,640 THERE'S AN EFFORT BY THE 662 00:26:02,640 --> 00:26:04,640 SECRETARY OF HEALTH AND HUMAN 663 00:26:04,640 --> 00:26:06,840 SERVICES TO APPOINT PEOPLE THAT 664 00:26:06,840 --> 00:26:10,960 REPRESENT THE BROAD VARIETY OF 665 00:26:10,960 --> 00:26:11,840 PERSPECTIVES ACROSS THE AUTISM 666 00:26:11,840 --> 00:26:12,120 COMMUNITY. 667 00:26:12,120 --> 00:26:13,560 FEEL FREE TO CHECK OUT OUR 668 00:26:13,560 --> 00:26:15,160 ROSTER AND THE BIOS ON OUR 669 00:26:15,160 --> 00:26:18,240 WEBSITE FOR THE MEMBERS OF THE 670 00:26:18,240 --> 00:26:21,080 COMMITTEE. 671 00:26:21,080 --> 00:26:24,120 >> THANK YOU, SUSAN AND THANK 672 00:26:24,120 --> 00:26:25,480 YOU ALLISON FOR YOUR GREAT 673 00:26:25,480 --> 00:26:27,240 RESPONSE AND WOULD LOVE TO REACH 674 00:26:27,240 --> 00:26:28,240 OUT AFTER IF THERE'S ANYTHING I 675 00:26:28,240 --> 00:26:29,120 CAN DO. 676 00:26:29,120 --> 00:26:29,600 THANK YOU. 677 00:26:29,600 --> 00:26:30,840 >> THANK YOU. 678 00:26:30,840 --> 00:26:33,920 WE HAVE A QUESTION FROM SUSAN 679 00:26:33,920 --> 00:26:38,160 RIVERA. 680 00:26:38,160 --> 00:26:43,480 >> IT'S MORE A COMMENT. 681 00:26:43,480 --> 00:26:49,840 I WANTED TO THANK HER FOR 682 00:26:49,840 --> 00:27:01,840 COMMENTS ON IACC AND ADD AN IDEA 683 00:27:01,840 --> 00:27:03,360 AND THERE'S TECHNOLOGY LIKE EYE 684 00:27:03,360 --> 00:27:08,440 TRACKING IN UNDERSTANDING WHEN 685 00:27:08,440 --> 00:27:11,400 YOU HAVE AUGMENTATIVE 686 00:27:11,400 --> 00:27:17,080 COMMUNICATION THAT IS MORE 687 00:27:17,080 --> 00:27:22,960 SELF-INITIATED VERSUS BEING THAN 688 00:27:22,960 --> 00:27:23,640 BEING SOMEONE ELSE'S 689 00:27:23,640 --> 00:27:24,440 COMMUNICATION AND WANT TO PUT 690 00:27:24,440 --> 00:27:25,720 OUT THE COMMUNICATION THAT THIS 691 00:27:25,720 --> 00:27:29,920 KIND OF RESEARCH BE ENCOURAGED, 692 00:27:29,920 --> 00:27:37,640 BE SUPPORTED AND FUND ED FUNDED TO PUT 693 00:27:37,640 --> 00:27:39,400 MYTHS TO REST AND USE THE 694 00:27:39,400 --> 00:27:41,000 TECHNOLOGY AND RESOURCES 695 00:27:41,000 --> 00:27:42,840 AVAILABLE TO US AS RESEARCHERS 696 00:27:42,840 --> 00:27:48,560 TO UNDERSTAND THE QUESTIONS. 697 00:27:48,560 --> 00:27:52,520 CRITICALLY WE NEED TO INVOLVE 698 00:27:52,520 --> 00:27:55,520 THOSE WHO ARE SCEPTICS AND 699 00:27:55,520 --> 00:27:58,280 SUPPORTERS OF IACC TO REALLY BE 700 00:27:58,280 --> 00:27:59,840 A PART OF THIS CONVERSATION AND 701 00:27:59,840 --> 00:28:01,960 PART OF THE RESEARCH SO EVERYONE 702 00:28:01,960 --> 00:28:04,640 SAY STAKEHOLDER IN INFORMATION 703 00:28:04,640 --> 00:28:05,960 THE TRUTH OF THE COMMUNICATION 704 00:28:05,960 --> 00:28:07,840 WHO IT HELPS AND WHAT WAYS THEY 705 00:28:07,840 --> 00:28:08,480 CAN HELP. 706 00:28:08,480 --> 00:28:11,040 USE WHAT WE ARE USING IN OTHER 707 00:28:11,040 --> 00:28:11,840 ELEMENTS OF RESEARCH TO UNPACK 708 00:28:11,840 --> 00:28:23,320 THE QUESTION. 709 00:28:23,320 --> 00:28:24,480 >> THANK YOU AND THE IACC 710 00:28:24,480 --> 00:28:25,920 STRATEGIC PLAN IS A GOOD PLACE 711 00:28:25,920 --> 00:28:27,040 TO MAKE RECOMMENDATIONS. 712 00:28:27,040 --> 00:28:30,280 WE'LL TALK ABOUT THAT AND OTHER 713 00:28:30,280 --> 00:28:31,280 TOPICS AT OUR JULY WORKING GROUP 714 00:28:31,280 --> 00:28:31,520 MEETING. 715 00:28:31,520 --> 00:28:40,640 SCOTT. 716 00:28:40,640 --> 00:28:46,760 >> I WANTED TO ECHO WHAT SUSAN 717 00:28:46,760 --> 00:28:53,880 WAS SHARING. 718 00:28:53,880 --> 00:28:57,640 AND LOOK AT THE STRATEGIC PLAN 719 00:28:57,640 --> 00:29:00,120 AND WE SHOULD EXPLORE THE 720 00:29:00,120 --> 00:29:01,240 LONG-TERM AND GREAT TO EXPLORE 721 00:29:01,240 --> 00:29:04,400 WAYS TO ENHANCE THE FOCUSES IN 722 00:29:04,400 --> 00:29:06,880 RESEARCH IN TERMS OF PRIORITIES 723 00:29:06,880 --> 00:29:09,360 THAT ARE BOTH FOR THE PROJECTS 724 00:29:09,360 --> 00:29:23,040 AND THE AUTISM CENTER S AND WHAT 725 00:29:23,040 --> 00:29:23,920 IT MEANS TO IMPROVE 726 00:29:23,920 --> 00:29:28,920 OPPORTUNITIES IN LIFE AND 727 00:29:28,920 --> 00:29:35,880 QUALITY OF LIFE AND ALSO AND 728 00:29:35,880 --> 00:29:38,680 MAYBE IN OCTOBER DURING NATIONAL 729 00:29:38,680 --> 00:29:41,920 IACC MONTH MAYBE WE CAN 730 00:29:41,920 --> 00:29:43,240 COLLABORATE ON A PANEL OF 731 00:29:43,240 --> 00:29:45,920 AUTISTIC AAC USERS TO CONNECT 732 00:29:45,920 --> 00:29:48,840 WITH THE EMPHASIS WITH THAT 733 00:29:48,840 --> 00:29:51,080 PRIORITY OF MAKING SURE FOLKS 734 00:29:51,080 --> 00:29:57,920 HAVE FULL ACCESS TO 735 00:29:57,920 --> 00:29:58,240 COMMUNICATION. 736 00:29:58,240 --> 00:30:00,440 WHICH IS A RIGHT IN PRIORITIES 737 00:30:00,440 --> 00:30:03,840 OF THE U.N. CONVENTION RIGHTS OF 738 00:30:03,840 --> 00:30:07,240 PERSONS WITH DISABILITIES UNCRPT 739 00:30:07,240 --> 00:30:09,200 AND IT'S GREAT SEEING THE 740 00:30:09,200 --> 00:30:11,920 COMMENTS ON EMPLOYMENT AND 741 00:30:11,920 --> 00:30:13,040 ACCESS TO CAREER PATHS FOR FOLKS 742 00:30:13,040 --> 00:30:16,120 AND A JUST WANT TO RELY ON FOLKS 743 00:30:16,120 --> 00:30:19,440 WE HAD THIS IN OUR ROUND ROBIN 744 00:30:19,440 --> 00:30:20,640 UPDATE WE'RE RUNNING THE 745 00:30:20,640 --> 00:30:21,640 RESEARCH PROJECT THE NEXT THREE 746 00:30:21,640 --> 00:30:25,280 YEARS AND STARTS THIS YEAR UP TO 747 00:30:25,280 --> 00:30:27,520 2024 ON PROJECT ON RESEARCH 748 00:30:27,520 --> 00:30:28,440 SUPPORT SERVICES FOR EMPLOYMENT 749 00:30:28,440 --> 00:30:31,440 OF YOUNG ADULTS ON THE AUTISM 750 00:30:31,440 --> 00:30:33,880 SPECTRUM AND WE'RE RUNNING 751 00:30:33,880 --> 00:30:40,240 LISTENING SESSIONS NOW IN APRIL 752 00:30:40,240 --> 00:30:41,840 THE PROJECT WILL CONTINUE TO 753 00:30:41,840 --> 00:30:43,440 REDUCE WORK BARRIERS AND FINDING 754 00:30:43,440 --> 00:30:45,160 SOLUTIONS, ENHANCING POLICIES 755 00:30:45,160 --> 00:30:49,800 AND PRACTICES AND IT'S GREAT TO 756 00:30:49,800 --> 00:30:52,280 FIND INPUT FROM FOLKS AND ALSO 757 00:30:52,280 --> 00:30:53,840 AN EMPHASIS ON THE WRITTEN 758 00:30:53,840 --> 00:30:55,360 COMMENTS WAS IN MORE DATA IN 759 00:30:55,360 --> 00:30:57,280 TERMS OF WHAT IT LOOKS LIKE IN 760 00:30:57,280 --> 00:30:58,720 THE SPECIFIC UNEMPLOYMENT AND 761 00:30:58,720 --> 00:30:59,960 UNDER EMPLOYMENT AND INCOME 762 00:30:59,960 --> 00:31:00,840 BARRIERS, ETCETERA. 763 00:31:00,840 --> 00:31:03,360 THAT'S SOMETHING WE'RE LOOKING 764 00:31:03,360 --> 00:31:06,240 IF WE CAN DO THINGS AT THE 765 00:31:06,240 --> 00:31:08,000 DEPARTMENT OF LABOR OR MAYBE 766 00:31:08,000 --> 00:31:09,920 COLLABORATE WITH FEDERAL 767 00:31:09,920 --> 00:31:12,600 PARTNERS ON THAT IN TERMS OF 768 00:31:12,600 --> 00:31:16,280 WHAT THAT LOOKS LIKE WITH 769 00:31:16,280 --> 00:31:17,440 DIFFERENT AVENUES AND SURVEYS AS 770 00:31:17,440 --> 00:31:19,440 POSSIBILITIES ON THE DATA. 771 00:31:19,440 --> 00:31:21,840 WE DO RECOGNIZE THERE'S A LARGE 772 00:31:21,840 --> 00:31:25,880 DATA GAP INCLUDING WHAT'S 773 00:31:25,880 --> 00:31:29,880 AVAILABLE IN THE EMPIRICAL 774 00:31:29,880 --> 00:31:32,440 LITERACY AND SMALLER STUDIES AND 775 00:31:32,440 --> 00:31:34,520 WE NEED TO LEARN ABOUT THE 776 00:31:34,520 --> 00:31:37,880 CURRENT STATE OF EMPLOYMENT, 777 00:31:37,880 --> 00:31:39,280 UNDER EMPLOYMENT, IN TERMS OF 778 00:31:39,280 --> 00:31:43,600 BARRIERS FOR FOLKS BEING ABLE TO 779 00:31:43,600 --> 00:31:45,080 FINDS THEIR INTEREST, WORK AND 780 00:31:45,080 --> 00:31:46,360 SKILLS AND BE SUCCESSFUL IN THE 781 00:31:46,360 --> 00:31:50,320 WORK THEY CAN ENJOY AND THRIVE. 782 00:31:50,320 --> 00:31:51,760 GREAT THE COMMENTS ARE THERE AND 783 00:31:51,760 --> 00:31:55,840 GREAT TO SEE ALSO THAT FOLKS ARE 784 00:31:55,840 --> 00:32:00,160 ACTIVELY CONTRIBUTING OVERALL 785 00:32:00,160 --> 00:32:02,440 THE COMMITTEE BROKE THE RECORD 786 00:32:02,440 --> 00:32:06,040 AS FAR AS WOULD YOU SAY -- 787 00:32:06,040 --> 00:32:11,240 >> 1 -- 2 71. 788 00:32:11,240 --> 00:32:12,840 >> TREMENDOUS ENGAGEMENT IN THE 789 00:32:12,840 --> 00:32:13,080 COMMUNITY. 790 00:32:13,080 --> 00:32:14,840 >> I'D LIKE TO THANK 791 00:32:14,840 --> 00:32:17,160 ORGANIZATIONS THAT HAVE SENT OUT 792 00:32:17,160 --> 00:32:18,800 NOTES TO PEOPLE AND PLEASE ANY 793 00:32:18,800 --> 00:32:24,800 ORGANIZATION THAT IS REPRESENTED 794 00:32:24,800 --> 00:32:28,680 HERE ENCOURAGE PEOPLE TO GIVE 795 00:32:28,680 --> 00:32:30,160 COMMENTS AND WE'LL FOLLOW UP ON 796 00:32:30,160 --> 00:32:31,840 THOSE THINGS AFTER THE MEETING. 797 00:32:31,840 --> 00:32:33,800 PAUL, DO YOU HAVE A COMMENT OR 798 00:32:33,800 --> 00:32:34,040 QUESTION? 799 00:32:34,040 --> 00:32:35,160 >> COMMENT, PLEASE. 800 00:32:35,160 --> 00:32:37,880 IT'S GOING TO SOUND LIKE I'M 801 00:32:37,880 --> 00:32:42,920 JUMPING ON THE BANDWAGON AND 802 00:32:42,920 --> 00:32:45,440 THERE'S A NUMBER OF OTHER 803 00:32:45,440 --> 00:32:47,160 WRITTEN COMMENTERS FOR BRINGING 804 00:32:47,160 --> 00:32:48,440 ATTENTION TO THE ISSUE OF IACC. 805 00:32:48,440 --> 00:32:54,680 I THINK THAT IS OF THE HIGHEST 806 00:32:54,680 --> 00:32:55,000 IMPORTANCE. 807 00:32:55,000 --> 00:32:57,840 I DON'T THINK THERE'S 808 00:32:57,840 --> 00:32:58,840 DISAGREEMENT THAT COMMUNICATION 809 00:32:58,840 --> 00:33:02,760 ABILITY IS CENTRAL TO QUALITY OF 810 00:33:02,760 --> 00:33:03,880 LIFE AND THAT'S THE QUALITY OF 811 00:33:03,880 --> 00:33:06,840 LIFE WE WANT TO ADVANCE AND IF 812 00:33:06,840 --> 00:33:08,160 COMMUNICATION DOES NOT WORK 813 00:33:08,160 --> 00:33:10,840 VERBALLY, LOCALLY, WE NEED TO 814 00:33:10,840 --> 00:33:13,840 FIND THESE OTHER AVENUES THROUGH 815 00:33:13,840 --> 00:33:16,520 WHICH AUTISTIC PEOPLE CAN 816 00:33:16,520 --> 00:33:16,840 COMMUNICATE. 817 00:33:16,840 --> 00:33:20,120 SO AAC IS WONDERFUL FOR THAT. 818 00:33:20,120 --> 00:33:22,160 DR. SUSAN RIVERA TALKED ABOUT 819 00:33:22,160 --> 00:33:23,520 THE NEED FOR RESEARCH ON IACC. 820 00:33:23,520 --> 00:33:24,720 I SECOND THAT CALL. 821 00:33:24,720 --> 00:33:26,840 I WANT TO MENTION MY 822 00:33:26,840 --> 00:33:29,760 ORGANIZATION, SAFARI, OR THE 823 00:33:29,760 --> 00:33:30,800 WE'RE BETTER KNOWN FOR RESEARCH 824 00:33:30,800 --> 00:33:34,520 ON GENETICS AND NEURO BIOLOGY 825 00:33:34,520 --> 00:33:36,800 AND RESEARCH SHOWING THERE'S 826 00:33:36,800 --> 00:33:38,600 NON-VERBAL AUTISTIC PEOPLE WHO 827 00:33:38,600 --> 00:33:40,560 CAN READ WHO WERE NEVER THOUGHT 828 00:33:40,560 --> 00:33:42,600 ABLE TO BE READ BUT THROUGH THE 829 00:33:42,600 --> 00:33:46,800 USING OF EYE TRACKING WE CAN 830 00:33:46,800 --> 00:33:47,640 DEMONSTRATE INDEED THEY 831 00:33:47,640 --> 00:33:49,840 COMPREHEND THE WORDS BEING SHOWN 832 00:33:49,840 --> 00:33:52,000 TO THEM SO CLEARLY THOSE ARE 833 00:33:52,000 --> 00:33:53,480 PEOPLE WHO MAY SOME BENEFIT FROM 834 00:33:53,480 --> 00:33:57,440 THE USE OF AAC. 835 00:33:57,440 --> 00:33:58,480 TO UNDER SCORE ONE PARTICULAR 836 00:33:58,480 --> 00:34:00,840 POINT EDLYN PENA RAISED, THERE 837 00:34:00,840 --> 00:34:03,000 ARE CASES WHERE IT'S THE 838 00:34:03,000 --> 00:34:04,640 FACILITATOR, THE COMMUNICATOR 839 00:34:04,640 --> 00:34:05,920 NOT THE PERSON WHO IS 840 00:34:05,920 --> 00:34:08,760 COMMUNICATING AND WE NEED TO BE 841 00:34:08,760 --> 00:34:10,480 ABLE TO ALSO DETERMINE, IDENTIFY 842 00:34:10,480 --> 00:34:12,840 WHERE THAT'S THE CASE BECAUSE 843 00:34:12,840 --> 00:34:16,520 THE AUTISTIC PERSON IS NOT BEING 844 00:34:16,520 --> 00:34:18,160 PROPERLY SUPPORTED OR 845 00:34:18,160 --> 00:34:19,080 REPRESENTED OR HELPED. 846 00:34:19,080 --> 00:34:21,040 THE QUALITY OF LIFE IS NOT BEING 847 00:34:21,040 --> 00:34:24,240 HELPED WHEN THEY'RE THOUGHT THE 848 00:34:24,240 --> 00:34:25,400 ONES ABLE TO SPEAK. 849 00:34:25,400 --> 00:34:27,120 WE NEED RESEARCH ON THE LARGER 850 00:34:27,120 --> 00:34:29,080 LEVEL AND BE ABLE TO IDENTIFY 851 00:34:29,080 --> 00:34:34,120 THE INDIVIDUAL CASES WHO IT'S 852 00:34:34,120 --> 00:34:34,720 WORKING FOR. 853 00:34:34,720 --> 00:34:39,440 AND IN RESPONSE TO STEVIE MAYS' 854 00:34:39,440 --> 00:34:42,200 COMMENTS THAT I DON'T THINK IT'S 855 00:34:42,200 --> 00:34:45,240 THE ABA THERAPIST TO BE BEST 856 00:34:45,240 --> 00:34:46,640 PLACED TO HELP WITH AAC. 857 00:34:46,640 --> 00:34:48,800 I AGEE THERE'S PEOPLE WHO NEED 858 00:34:48,800 --> 00:34:51,320 AND BENEFIT MORE FROM AAC THAN 859 00:34:51,320 --> 00:34:54,240 FROM ABA BUT IT'S NOT THE ABA 860 00:34:54,240 --> 00:34:56,240 PERSON WHO SHOULD STEP IN THAT 861 00:34:56,240 --> 00:35:00,440 ROLE AND IN ALL CASES IT'S GOING 862 00:35:00,440 --> 00:35:01,960 TO BE SOMEONE WITH SPEECH 863 00:35:01,960 --> 00:35:03,160 PATHOLOGY TRAINING IN THE BEST 864 00:35:03,160 --> 00:35:04,200 PLACE TO DO THAT AND FAMILIES 865 00:35:04,200 --> 00:35:05,880 AND INDIVIDUALS NEED THE FUNDING 866 00:35:05,880 --> 00:35:07,680 AND SUPPORT TO GET THOSE 867 00:35:07,680 --> 00:35:10,680 SERVICES TO SUPPORT AAC AND TO 868 00:35:10,680 --> 00:35:11,480 HAVE A HIGHLY QUALIFIED 869 00:35:11,480 --> 00:35:12,920 INDIVIDUAL HELP THEM WITH THE 870 00:35:12,920 --> 00:35:17,920 AAC. 871 00:35:17,920 --> 00:35:20,760 >> THANK YOU FOR THE COMMENTS. 872 00:35:20,760 --> 00:35:22,240 NEXT WE'LL TAKE SPAY COMMENT OR 873 00:35:22,240 --> 00:35:30,640 QUESTION FROM IVANOVA SMITH. 874 00:35:30,640 --> 00:35:37,640 >> I WANT TO SAY I'M SUPPORTIVE 875 00:35:37,640 --> 00:35:41,120 FOR RESEARCH AND FOR 876 00:35:41,120 --> 00:35:45,600 COMMUNICATION AND I ALSO WANT TO 877 00:35:45,600 --> 00:35:46,880 VALUE WHEN SOMEBODY HAS 878 00:35:46,880 --> 00:35:47,640 COMMUNICATION. 879 00:35:47,640 --> 00:35:51,800 SOME PEOPLE ARE ESPECIALLY 880 00:35:51,800 --> 00:35:53,440 CHILDREN, YOUNG CHILDREN LIKE 881 00:35:53,440 --> 00:35:56,640 BODY LANGUAGE IS THE FIRST WAY 882 00:35:56,640 --> 00:35:57,120 YOU COMMUNICATE. 883 00:35:57,120 --> 00:36:00,240 AND WE NEED TO MAKE SURE WE 884 00:36:00,240 --> 00:36:03,760 RECOGNIZE THAT AND SOMEBODY IS 885 00:36:03,760 --> 00:36:05,160 STILL STRUGGLING WITH OTHER 886 00:36:05,160 --> 00:36:05,960 TERMS OF COMMUNICATION THAT WE 887 00:36:05,960 --> 00:36:08,200 RECOGNIZE THE BODY LANGUAGE AS A 888 00:36:08,200 --> 00:36:09,960 FORM OF COMMUNICATION AND WE 889 00:36:09,960 --> 00:36:13,240 DON'T JUST WAVE IT OFF AS A 890 00:36:13,240 --> 00:36:14,040 CHALLENGING BEHAVIOR. 891 00:36:14,040 --> 00:36:15,360 A LOT OF TIMES THAT HAPPENS BUT 892 00:36:15,360 --> 00:36:18,760 IT COULD BE A MEDICAL THING OR 893 00:36:18,760 --> 00:36:24,840 IT COULD BE SOMETHING GOING ON 894 00:36:24,840 --> 00:36:25,920 THAT IF THEY TRIED TO 895 00:36:25,920 --> 00:36:29,600 COMMUNICATE WITH THEIR BODY 896 00:36:29,600 --> 00:36:34,600 LANGUAGE IT WOULD HELP. 897 00:36:34,600 --> 00:36:40,200 AND I THINK THAT ALSO SIGN 898 00:36:40,200 --> 00:36:41,920 LANGUAGE IS A FORM OF 899 00:36:41,920 --> 00:36:43,440 COMMUNICATION AND A SUPPORT THE 900 00:36:43,440 --> 00:36:44,440 WONDERFUL COMMENTS FROM 901 00:36:44,440 --> 00:36:49,440 NON-SPEAKING INDIVIDUALS AND 902 00:36:49,440 --> 00:36:51,640 THANK THEM. 903 00:36:51,640 --> 00:36:53,880 I THINK WE NEED TO MAKE SURE 904 00:36:53,880 --> 00:36:55,280 PEOPLE THAT ARE NON-SPEAKING 905 00:36:55,280 --> 00:36:56,680 HAVE THE SAME RIGHTS AS PEOPLE 906 00:36:56,680 --> 00:36:59,720 WHO ARE SPEAKING AND THAT WE 907 00:36:59,720 --> 00:37:01,320 DON'T HAVE POLICY THAT RESTRICT 908 00:37:01,320 --> 00:37:03,160 THE RIGHTS BECAUSE A PERSON 909 00:37:03,160 --> 00:37:03,480 CANNOT SPEAK. 910 00:37:03,480 --> 00:37:11,560 THANK YOU. 911 00:37:11,560 --> 00:37:13,640 >> THANK YOU, IVANOVA. 912 00:37:13,640 --> 00:37:17,920 NEXT WE'LL HEAR FROM JULIE 913 00:37:17,920 --> 00:37:23,480 TAYLOR. 914 00:37:23,480 --> 00:37:26,640 >> I WANTED TO RESPOND QUICKLY 915 00:37:26,640 --> 00:37:28,320 ABOUT THE COMMENTS ON EMPLOYMENT 916 00:37:28,320 --> 00:37:31,800 AND PIGGY BACK ON WHAT SCOTT WAS 917 00:37:31,800 --> 00:37:33,600 DISCUSSING AND WE NEED TO HAVE A 918 00:37:33,600 --> 00:37:34,840 DISCUSSION OFFLINE BECAUSE WE'RE 919 00:37:34,840 --> 00:37:36,480 RIGHT IN THE MIDDLE OF A STUDY 920 00:37:36,480 --> 00:37:42,520 OR BE THE -- OR THE BEGINNING 921 00:37:42,520 --> 00:37:45,040 TAKING A DEEP DIVE IN 922 00:37:45,040 --> 00:37:47,120 UNDERSTANDING WHAT IS HELPFUL 923 00:37:47,120 --> 00:37:49,880 AND HELPING AUTISTIC ADULTS GET 924 00:37:49,880 --> 00:37:51,920 ON A POSITIVE EMPLOYMENT 925 00:37:51,920 --> 00:37:52,240 TRAJECTORY. 926 00:37:52,240 --> 00:37:53,320 IT'S A SMALLER STUDY THAN WHAT 927 00:37:53,320 --> 00:37:57,880 YOU'LL BE ABLE TO DO AT DOL BUT 928 00:37:57,880 --> 00:37:59,120 200 ADULTS WILL BE FOLLOWED 929 00:37:59,120 --> 00:38:01,120 CLOSELY OVER TWO YEARS AND DO A 930 00:38:01,120 --> 00:38:06,640 DEEP DIVE TO UNDERSTAND THE 931 00:38:06,640 --> 00:38:08,160 CHARACTERISTICS OF THE WORKPLACE 932 00:38:08,160 --> 00:38:09,960 AND THE SERVICE SYSTEMS AND WHAT 933 00:38:09,960 --> 00:38:12,240 STRENGTHS THEY BRING TO THE 934 00:38:12,240 --> 00:38:13,400 TABLE TO HELP ENHANCE EMPLOYMENT 935 00:38:13,400 --> 00:38:16,920 STABILITY AND HELPING PEOPLE ON 936 00:38:16,920 --> 00:38:18,840 WHAT'S PREDICTIVE OF UPWARD 937 00:38:18,840 --> 00:38:20,120 TRAJECTORY IN MOVING INTO 938 00:38:20,120 --> 00:38:22,080 CAREERS AND JOBS THAT FULFILL 939 00:38:22,080 --> 00:38:24,840 NEEDS FOR THEM. 940 00:38:24,840 --> 00:38:26,240 YOU GUYS ARE DOING THIS ON A 941 00:38:26,240 --> 00:38:27,160 LARGE SCALE. 942 00:38:27,160 --> 00:38:30,840 WE'LL DO IT ON A SMALLER SCALE 943 00:38:30,840 --> 00:38:32,600 BUT REALLY DELVE DEEPLY INTO HOW 944 00:38:32,600 --> 00:38:33,840 PEOPLE ARE SPENDING THEIR DAYS 945 00:38:33,840 --> 00:38:35,680 AND EMPLOYMENT ACTIVITY TO GET A 946 00:38:35,680 --> 00:38:37,440 LOT OF INFORMATION ABOUT THE 947 00:38:37,440 --> 00:38:42,360 DIFFERENT WAYS WE CAN SUPPORT 948 00:38:42,360 --> 00:38:44,280 AUTISTIC ADULTS IN POSITIVE 949 00:38:44,280 --> 00:38:44,480 WAYS. 950 00:38:44,480 --> 00:38:45,680 I THINK WE'LL LEARN A LOT OF 951 00:38:45,680 --> 00:38:46,840 ABOUT THIS OVER THE NEXT FEW 952 00:38:46,840 --> 00:38:50,120 YEARS AND OTHER PEOPLE ARE DOING 953 00:38:50,120 --> 00:38:50,440 GREAT WORK. 954 00:38:50,440 --> 00:38:56,280 I WANTED TO MENTION THE STUDY 955 00:38:56,280 --> 00:39:00,840 WE'RE WORKING ON. 956 00:39:00,840 --> 00:39:01,960 >> THANK YOU FOR SHARING AND 957 00:39:01,960 --> 00:39:04,040 WE'RE LOOKING FORWARD TO HEARING 958 00:39:04,040 --> 00:39:05,560 MORE IN THE FUTURE. 959 00:39:05,560 --> 00:39:10,440 NEXT A COMMENT FROM STEVEN 960 00:39:10,440 --> 00:39:14,640 ISAACSON ON THE OARAC TEAM AND 961 00:39:14,640 --> 00:39:17,080 BELIEVE HE HAS A COMMENT TO 962 00:39:17,080 --> 00:39:17,440 SHARE. 963 00:39:17,440 --> 00:39:19,720 >> I HAVE WE TO COMMENTS FROM 964 00:39:19,720 --> 00:39:19,920 HARI. 965 00:39:19,920 --> 00:39:21,640 FIRST, EDLYN. 966 00:39:21,640 --> 00:39:22,800 EVERYBODY DESERVES TO BE 967 00:39:22,800 --> 00:39:23,760 INCLUDED. 968 00:39:23,760 --> 00:39:25,960 IT'S LIKE EVERYONE IS SO 969 00:39:25,960 --> 00:39:28,720 OBSESSED OVER ONE ISSUE THE 970 00:39:28,720 --> 00:39:29,960 ENTIRE COMMUNITY IS GATE KEEP 971 00:39:29,960 --> 00:39:30,840 FROM ACCESSING OPPORTUNITIES 972 00:39:30,840 --> 00:39:32,640 THAT CONTRIBUTE TO THEIR 973 00:39:32,640 --> 00:39:33,920 SUCCESS, EDUCATION, WELL BEING 974 00:39:33,920 --> 00:39:37,440 AND EVEN EMPLOYMENT. 975 00:39:37,440 --> 00:39:39,080 THE SECOND COMMENT IS IN REGARDS 976 00:39:39,080 --> 00:39:40,160 TO PAUL. 977 00:39:40,160 --> 00:39:41,360 THANKS, PAUL. 978 00:39:41,360 --> 00:39:43,200 IT'S ABOUT QUALITY OF LIFE. 979 00:39:43,200 --> 00:39:45,680 YOU CAN LEARN READING AND 980 00:39:45,680 --> 00:39:47,440 COUNTING FROM JUST WATCHING 981 00:39:47,440 --> 00:39:49,000 SESAME STREET, MY FAVORITE 982 00:39:49,000 --> 00:39:52,240 CHILDHOOD PROGRAM. 983 00:39:52,240 --> 00:39:56,880 >> THANK YOU, STEVEN. 984 00:39:56,880 --> 00:39:59,280 NEXT WE CAN HEAR FROM FELICIA 985 00:39:59,280 --> 00:39:59,560 HALLADAY. 986 00:39:59,560 --> 00:40:01,480 >> THANK YOU FOR TAKING MY 987 00:40:01,480 --> 00:40:02,240 COMMENT, SUSAN. 988 00:40:02,240 --> 00:40:04,240 I WANTED TO MAKE THE POINT HERE 989 00:40:04,240 --> 00:40:05,840 THAT WE SEEM TO BE LUMPING 990 00:40:05,840 --> 00:40:11,360 TOGETHER THE TERM AAC WITH FC 991 00:40:11,360 --> 00:40:12,360 FOR FACILITATED COMMUNICATION 992 00:40:12,360 --> 00:40:15,440 AND I DON'T KNOW BUT I'M HOPING 993 00:40:15,440 --> 00:40:16,960 THAT THERE'S SOME SORT OF 994 00:40:16,960 --> 00:40:17,720 DISTINCTION ABOUT THIS MADE IN 995 00:40:17,720 --> 00:40:18,800 ONE OF THE PRESENTATIONS BUT I 996 00:40:18,800 --> 00:40:21,040 WOULD JUST LIKE TO MAKE SURE 997 00:40:21,040 --> 00:40:23,600 THAT GOING FORWARD WE ARE VERY 998 00:40:23,600 --> 00:40:26,720 SPECIFIC ABOUT THE AAC AND WHAT 999 00:40:26,720 --> 00:40:29,080 THAT MEANS VERSUS FC OR 1000 00:40:29,080 --> 00:40:29,720 FACILITATED COMMUNICATION AND 1001 00:40:29,720 --> 00:40:33,240 WHAT THAT ENTAILS. 1002 00:40:33,240 --> 00:40:37,840 SO JUST TO MAKE SURE WE'RE CLEAR 1003 00:40:37,840 --> 00:40:39,800 BECAUSE SOME PEOPLE KNOW THE 1004 00:40:39,800 --> 00:40:40,640 DIFFERENCE AND OTHERS WATCHING 1005 00:40:40,640 --> 00:40:41,320 MAY NOT. 1006 00:40:41,320 --> 00:40:42,520 >> THANK YOU FOR SHARING THE 1007 00:40:42,520 --> 00:40:42,920 CLARIFICATION. 1008 00:40:42,920 --> 00:40:45,840 I'M SURE OUR SPEAKERS IN THE 1009 00:40:45,840 --> 00:40:47,880 NEXT SECTION WILL BE ABLE TO 1010 00:40:47,880 --> 00:40:49,840 ADDRESS THAT. 1011 00:40:49,840 --> 00:40:51,320 WE HAVE A COMMENT FROM DENA. 1012 00:40:51,320 --> 00:40:53,720 >> QUICKLY, I FORGOT TO MENTION 1013 00:40:53,720 --> 00:40:56,480 THIS, I WANTED TO MAKE SURE WE 1014 00:40:56,480 --> 00:40:58,400 ALSO KEEP THE UNDERSTANDING THAT 1015 00:40:58,400 --> 00:41:01,920 SOME PEOPLE WHO ARE PRIMARILY 1016 00:41:01,920 --> 00:41:05,440 VERBAL CAN HAVE EPISODIC MUTISM 1017 00:41:05,440 --> 00:41:10,640 WHERE THEIR LANGUAGE FLOWS IN 1018 00:41:10,640 --> 00:41:13,920 AND OUT I KNOW A FEW PEOPLE HAVE 1019 00:41:13,920 --> 00:41:16,440 BOTH VERBAL LANGUAGE BUT UNDER 1020 00:41:16,440 --> 00:41:17,880 EXTREME PRESSURE TO PERFORM BUT 1021 00:41:17,880 --> 00:41:20,840 UNDER THE FLOW OF ANXIETY OR A 1022 00:41:20,840 --> 00:41:21,760 CHALLENGING SITUATION THEIR 1023 00:41:21,760 --> 00:41:24,360 LANGUAGE MAY NO LONGER BEING 1024 00:41:24,360 --> 00:41:25,880 ACCESSIBLE TO THEM AND THEY'RE 1025 00:41:25,880 --> 00:41:27,040 ALSO OFTEN IACC USERS. 1026 00:41:27,040 --> 00:41:28,640 SO WHEN WE'RE TALKING ABOUT IT I 1027 00:41:28,640 --> 00:41:29,880 WANT TO MAKE SURE WE'RE MAKING 1028 00:41:29,880 --> 00:41:31,000 ROOM FOR PEOPLE WHO USE BOTH 1029 00:41:31,000 --> 00:41:31,280 MODALITIES. 1030 00:41:31,280 --> 00:41:39,640 THANK YOU. 1031 00:41:39,640 --> 00:41:41,480 >> THANK YOU AND IT'S A GOOD 1032 00:41:41,480 --> 00:41:42,200 CLARIFICATION TO REALIZE THERE'S 1033 00:41:42,200 --> 00:41:44,800 PEOPLE WHO DO SPEAK AT TIMES AND 1034 00:41:44,800 --> 00:41:47,880 OTHER TIMES IT'S EASIER TO USE 1035 00:41:47,880 --> 00:41:50,640 AAC AND WE WELCOME ANY KIND OF 1036 00:41:50,640 --> 00:41:52,240 COMMUNICATION THAT WORKS FOR 1037 00:41:52,240 --> 00:41:52,600 THEM. 1038 00:41:52,600 --> 00:41:53,840 NEXT A COMMENT FROM JALYNN 1039 00:41:53,840 --> 00:42:09,240 PRINCE. 1040 00:42:09,240 --> 00:42:09,920 >> THANK YOU. 1041 00:42:09,920 --> 00:42:12,040 THIS IS AN IMPORTANT TOPIC. 1042 00:42:12,040 --> 00:42:15,240 I'M A MOTHER OF A SON WHO IS 1043 00:42:15,240 --> 00:42:16,240 BASICALLY NON-VERBAL. 1044 00:42:16,240 --> 00:42:17,680 HE UTILIZES ART A WAY OF 1045 00:42:17,680 --> 00:42:20,360 COMMUNICATION AND IT'S DEEP AND 1046 00:42:20,360 --> 00:42:21,080 VERY PROFOUND BUT THERE'S 1047 00:42:21,080 --> 00:42:26,440 ANOTHER HAT I WEAR AND SOMETIMES 1048 00:42:26,440 --> 00:42:28,640 YOU'LL SEE THE GO BACK AND FORTH 1049 00:42:28,640 --> 00:42:30,800 BETWEEN HARD DATA RESEARCH AND 1050 00:42:30,800 --> 00:42:32,960 PRACTICAL ASPECTS BECAUSE OUR 1051 00:42:32,960 --> 00:42:36,440 FIND WORK DIRECTLY WITH PEOPLE 1052 00:42:36,440 --> 00:42:38,640 WITH PARENTS WITH UNDERSTANDING 1053 00:42:38,640 --> 00:42:39,520 HOW TO COMMUNICATE TO THE 1054 00:42:39,520 --> 00:42:41,880 BROADER COMMUNITY WHAT MANY OF 1055 00:42:41,880 --> 00:42:45,200 THE NEEDS ARE WITHIN OUR 1056 00:42:45,200 --> 00:42:48,280 COMMUNITY OF AUTISM AND AS A 1057 00:42:48,280 --> 00:42:51,240 RESULT WE HAVE A PROGRAM 1058 00:42:51,240 --> 00:42:52,640 TARGETED VERY MUCH ON OUR AUTISM 1059 00:42:52,640 --> 00:42:59,760 AFTER 21 DAY WHICH IS NEXT 1060 00:42:59,760 --> 00:43:00,320 THURSDAY AND GEAR TOWARDS 1061 00:43:00,320 --> 00:43:03,120 THOUGHT LEADERS IN THE COMMUNITY 1062 00:43:03,120 --> 00:43:04,840 AND AS A RESULT WE HAVE A VERY 1063 00:43:04,840 --> 00:43:08,600 INTERESTING VIDEO THAT IS BEING 1064 00:43:08,600 --> 00:43:10,520 PRODUCED AND IF IT ENDS UP AS 1065 00:43:10,520 --> 00:43:12,720 GOOD AS THE OTHERS, WE'VE HAD 1066 00:43:12,720 --> 00:43:15,680 OUR FIRST EDITS WITH IT AND HAVE 1067 00:43:15,680 --> 00:43:19,200 THREE YOUNG MEN FEATURED IN THIS 1068 00:43:19,200 --> 00:43:21,240 AND THIS IS A COHORT OF FIVE 1069 00:43:21,240 --> 00:43:23,800 YOUNG MEN THAT HAVE GROWN UP 1070 00:43:23,800 --> 00:43:25,400 TOGETHER THAT USE AUGMENTATIVE 1071 00:43:25,400 --> 00:43:28,440 COMMUNICATION AND ONE YOUNG MAN 1072 00:43:28,440 --> 00:43:31,360 SAID AS HE GOT INTO THIS THAT 1073 00:43:31,360 --> 00:43:33,040 FINALLY HE'D BE LET OUT OF 1074 00:43:33,040 --> 00:43:34,720 PRISON BECAUSE HE WAS ABLE TO 1075 00:43:34,720 --> 00:43:35,440 COMMUNICATE. 1076 00:43:35,440 --> 00:43:36,800 WE'RE ALL EXTREMELY ARTICULATE. 1077 00:43:36,800 --> 00:43:38,440 IT'S A VIDEO ABOUT FOUR AND A 1078 00:43:38,440 --> 00:43:39,960 HALF MINUTES BECAUSE WE TRY TO 1079 00:43:39,960 --> 00:43:42,200 KEEP IT BRIEF ENOUGH WE CAN SHOW 1080 00:43:42,200 --> 00:43:45,360 IT TO A LOT OF THESE THAUTH 1081 00:43:45,360 --> 00:43:46,000 LEADERS AND DEMYSTIFY THINGS 1082 00:43:46,000 --> 00:43:47,640 THAT GO VERY MUCH TO THE POINT 1083 00:43:47,640 --> 00:43:49,880 OF EMPLOYMENT BECAUSE IF WE CAN 1084 00:43:49,880 --> 00:43:54,480 HAVE EMPLOYERS AND OTHERS IN THE 1085 00:43:54,480 --> 00:43:55,080 COMMUNITY UNDERSTAND BEHIND 1086 00:43:55,080 --> 00:43:57,880 SOMEONE WHO MAY BE SOMEWHAT 1087 00:43:57,880 --> 00:44:00,320 SILENT VERBALLY, THERE COULD BE 1088 00:44:00,320 --> 00:44:01,960 A LOT OF CONTENT AND VALUE IN 1089 00:44:01,960 --> 00:44:04,800 EMPLOYING THE INDIVIDUALS AS 1090 00:44:04,800 --> 00:44:05,160 WELL. 1091 00:44:05,160 --> 00:44:07,840 AND IT WILL BE MADE AVAILABLE ON 1092 00:44:07,840 --> 00:44:12,240 THE MADISON HOUSE AUTISM WEBSITE 1093 00:44:12,240 --> 00:44:13,840 AFTER THE 21st OF APRIL. 1094 00:44:13,840 --> 00:44:15,280 IF YOU WANT TO SHOW IT TO ANYONE 1095 00:44:15,280 --> 00:44:17,440 OR TAKE A LOOK AT IT AND 1096 00:44:17,440 --> 00:44:19,160 COMMENT, WE THINK IT'S IMPORTANT 1097 00:44:19,160 --> 00:44:20,880 TO BE ABLE TO COMMUNICATE NOT 1098 00:44:20,880 --> 00:44:22,840 JUST WITH PROFESSIONALS AND 1099 00:44:22,840 --> 00:44:24,800 PEOPLE INVOLVED IN THINGS LIKE 1100 00:44:24,800 --> 00:44:25,640 OURSELVES, BUT WITH THE REST OF 1101 00:44:25,640 --> 00:44:29,160 THE COMMUNITY SO WE CAN HAVE 1102 00:44:29,160 --> 00:44:30,800 GREATER UNDERSTANDING HOW TO 1103 00:44:30,800 --> 00:44:37,040 HAVE ACCEPTANCE HAPPEN WITHIN 1104 00:44:37,040 --> 00:44:37,640 OUR COMMUNITY. 1105 00:44:37,640 --> 00:44:40,000 THANK YOU VERY MUCH 1106 00:44:40,000 --> 00:44:41,520 >> THANK YOU. 1107 00:44:41,520 --> 00:44:44,040 AND WE HAVE INFORMATION ABOUT 1108 00:44:44,040 --> 00:44:46,560 THE AUTISM AFTER 21 DAY ON THE 1109 00:44:46,560 --> 00:44:48,800 WEB PAGE WHICH WILL TAKE YOU TO 1110 00:44:48,800 --> 00:44:51,440 THE MADISON HOUSE WEBSITE. 1111 00:44:51,440 --> 00:44:52,120 NEXT I'D LIKE TO HEAR FROM 1112 00:44:52,120 --> 00:45:00,120 LINDSEY. 1113 00:45:00,120 --> 00:45:01,320 >> THIS IS STEVEN. 1114 00:45:01,320 --> 00:45:02,240 THANK YOU TO EVERYONE WHO 1115 00:45:02,240 --> 00:45:03,800 SUBMITTED AND SHARED YOUR 1116 00:45:03,800 --> 00:45:04,040 COMMENTS. 1117 00:45:04,040 --> 00:45:05,960 IN REVIEWING THE WRITTEN 1118 00:45:05,960 --> 00:45:08,400 COMMENTS AND LISTENING TO THE 1119 00:45:08,400 --> 00:45:13,200 ORAL COMMENTS FOR THE APRIL 2022 1120 00:45:13,200 --> 00:45:16,440 COMMITTEE MEETING ONE THING THAT 1121 00:45:16,440 --> 00:45:17,920 STANDS OUT IS COMMUNICATION AND 1122 00:45:17,920 --> 00:45:20,960 NOT ADEQUATE COMMUNICATION 1123 00:45:20,960 --> 00:45:21,280 SUPPORTS. 1124 00:45:21,280 --> 00:45:22,920 AS MENTIONED IN SOME WRITTEN 1125 00:45:22,920 --> 00:45:24,840 COMMENTS, THIS APPLIES TO 1126 00:45:24,840 --> 00:45:26,800 AUTISTICS WHO HAVE MORE 1127 00:45:26,800 --> 00:45:28,160 SIGNIFICANT SUPPORT NEEDS AND 1128 00:45:28,160 --> 00:45:29,120 HAVE NOT YET SUCCEEDED IN 1129 00:45:29,120 --> 00:45:30,280 FINDING A METHOD OF 1130 00:45:30,280 --> 00:45:30,880 COMMUNICATION THAT WORKS FOR 1131 00:45:30,880 --> 00:45:34,680 THEM. 1132 00:45:34,680 --> 00:45:37,840 NOT EVERYONE HAS BEEN ABLE TO 1133 00:45:37,840 --> 00:45:39,080 SUCCESSFULLY LEARN HOW TO USE 1134 00:45:39,080 --> 00:45:40,640 COMMUNICATION DEVICES CURRENTLY 1135 00:45:40,640 --> 00:45:40,880 AVAILABLE. 1136 00:45:40,880 --> 00:45:42,560 IT'S INCREDIBLY IMPORTANT TO TAY 1137 00:45:42,560 --> 00:45:44,440 PASSENGERS TO AS WE DISCUSS OUR 1138 00:45:44,440 --> 00:45:45,160 RESEARCH PRIORITIES. 1139 00:45:45,160 --> 00:45:46,960 WE NEED TO CONTINUE TO 1140 00:45:46,960 --> 00:45:48,600 ACKNOWLEDGE AND RECOGNIZE THE 1141 00:45:48,600 --> 00:45:50,040 CONCERNS RAISED BY OUR COMMUNITY 1142 00:45:50,040 --> 00:45:52,320 ABOUT EXCLUDE BEING THE VOICES 1143 00:45:52,320 --> 00:45:54,560 OF INDIVIDUALS WITH HIGH SUPPORT 1144 00:45:54,560 --> 00:45:54,800 NEEDS. 1145 00:45:54,800 --> 00:45:56,240 I APPRECIATE THE IACC EFFORTS IN 1146 00:45:56,240 --> 00:45:57,280 BEGINNING TO IMPROVE THE 1147 00:45:57,280 --> 00:45:59,840 DIVERSITY OF VOICES ON THE 1148 00:45:59,840 --> 00:46:00,040 TABLE. 1149 00:46:00,040 --> 00:46:03,240 WE HAVE BEGUN TO WITNESS THE 1150 00:46:03,240 --> 00:46:04,160 EFFORTS TAKE PLACE IN THE 1151 00:46:04,160 --> 00:46:05,960 CURRENT REPRESENTATION OF OUR 1152 00:46:05,960 --> 00:46:08,960 COMMITTEE MEMBERS HOWEVER, I 1153 00:46:08,960 --> 00:46:11,480 WANT TO BE CLEAR THAT WE HAVE TO 1154 00:46:11,480 --> 00:46:13,760 AMPLIFY THE VOICES OF 1155 00:46:13,760 --> 00:46:15,120 INDIVIDUALS AND LOVED ONES WHO 1156 00:46:15,120 --> 00:46:15,760 REQUIRE HIGHER SUPPORT NEEDS AND 1157 00:46:15,760 --> 00:46:18,240 NEED TO ENSURE THEY HAVE 1158 00:46:18,240 --> 00:46:19,240 REPRESENTATION ON THE TABLE. 1159 00:46:19,240 --> 00:46:20,720 WE NEED TO DO BETTER ON 1160 00:46:20,720 --> 00:46:23,200 FOCUSSING ON THE ENTIRETY OF THE 1161 00:46:23,200 --> 00:46:24,360 SPECTRUM PARTICULARLY 1162 00:46:24,360 --> 00:46:29,920 INDIVIDUALS AND THEIR LOVED ONES 1163 00:46:29,920 --> 00:46:33,200 WHO RELY ON 24/7 SUPPORT AND I 1164 00:46:33,200 --> 00:46:35,440 WANT TO ENCOURAGE THE IACC 1165 00:46:35,440 --> 00:46:36,840 CONTINUE EFFORTS TO IMPROVE THE 1166 00:46:36,840 --> 00:46:40,240 DIVERSITY OF ITS MEMBERS AND WE 1167 00:46:40,240 --> 00:46:41,880 DO NOT LOSE SIGHT OF THAT EFFORT 1168 00:46:41,880 --> 00:46:45,880 AND WANT TO THANK DR. GORDON FOR 1169 00:46:45,880 --> 00:46:47,920 REMARKS ON LISTENING AND 1170 00:46:47,920 --> 00:46:49,640 RESPECTING EACH OTHER'S 1171 00:46:49,640 --> 00:46:49,960 PERSPECTIVES. 1172 00:46:49,960 --> 00:46:50,600 >> THANK YOU VERY MUCH FOR THOSE 1173 00:46:50,600 --> 00:47:00,840 COMMENTS. 1174 00:47:00,840 --> 00:47:02,080 NEXT, CRAIG JOHNSON. 1175 00:47:02,080 --> 00:47:04,600 >> I'M EXCITED TO HEAR WHAT 1176 00:47:04,600 --> 00:47:05,640 SCOTT WAS TALKING ABOUT AND 1177 00:47:05,640 --> 00:47:11,480 JULIE WHEN IT COMES TO JOBS. 1178 00:47:11,480 --> 00:47:12,440 I'VE SEEN BREAKTHROUGHS HAPPEN 1179 00:47:12,440 --> 00:47:17,520 WITHIN STATE ORGANIZATIONS. 1180 00:47:17,520 --> 00:47:20,320 I'D LOVE TO EXPLORE HOW MUCH AND 1181 00:47:20,320 --> 00:47:24,640 WE'RE HELPING MRO INING EMPLOYERS PROVIDE 1182 00:47:24,640 --> 00:47:25,920 JOBS OR WORK WITH DIFFERENT 1183 00:47:25,920 --> 00:47:27,400 INDIVIDUALS. 1184 00:47:27,400 --> 00:47:29,720 IN OUR STATE WE'VE DONE THREE 1185 00:47:29,720 --> 00:47:32,920 JOB FAIRS IN THE LAST THREE 1186 00:47:32,920 --> 00:47:35,520 YEARS A PLACE CALLED TEXAS 1187 00:47:35,520 --> 00:47:38,560 WORKFORCE SOLUTIONS HAS GOTTEN 1188 00:47:38,560 --> 00:47:40,040 40 OR 50 EMPLOYERS WILLING TO 1189 00:47:40,040 --> 00:47:41,680 WORK WITH SPECIAL NEEDS ADULT TO 1190 00:47:41,680 --> 00:47:43,640 HAVE THEM APPLY FOR JOBS AND 1191 00:47:43,640 --> 00:47:47,400 MANY GOT JOBS. 1192 00:47:47,400 --> 00:47:51,760 I WOULD LOVE TO SEE HOW WE BEGIN 1193 00:47:51,760 --> 00:47:54,440 TO WORK NATIONALLY AS WELL AS 1194 00:47:54,440 --> 00:47:55,200 STATEWIDE WITH BREAKS THROUGH 1195 00:47:55,200 --> 00:47:57,520 AND HEAR FROM DIFFERENT PEOPLE 1196 00:47:57,520 --> 00:47:59,160 ON THE COMMITTEE WHAT MIGHT BE 1197 00:47:59,160 --> 00:48:02,080 HAPPENING IN THEIR STATE OR IN 1198 00:48:02,080 --> 00:48:03,320 THEIR PARTICULAR AREA AND BUILD. 1199 00:48:03,320 --> 00:48:11,240 THAT WOULD BE AMAZING. 1200 00:48:11,240 --> 00:48:12,040 >> THANK YOU. 1201 00:48:12,040 --> 00:48:13,480 CRAIG AND SCOTT, DID YOU HAVE 1202 00:48:13,480 --> 00:48:14,520 ANYTHING TO SAY ABOUT STATES AND 1203 00:48:14,520 --> 00:48:17,600 EMPLOYMENT THAT MAY HELP WITH 1204 00:48:17,600 --> 00:48:17,800 THAT? 1205 00:48:17,800 --> 00:48:18,240 >> SURE. 1206 00:48:18,240 --> 00:48:21,040 SO WE ALSO DO -- I SHOULD SAY IN 1207 00:48:21,040 --> 00:48:22,640 PREFERENCE, WE HAVE MUCH 1208 00:48:22,640 --> 00:48:26,160 ENGAGEMENT WITH STAKE AND LOCAL 1209 00:48:26,160 --> 00:48:27,440 POLICY AT U.S. DEPARTMENT OF 1210 00:48:27,440 --> 00:48:27,960 LABOR. 1211 00:48:27,960 --> 00:48:33,920 WE HAVE A PROJECT ON STATE LOCAL 1212 00:48:33,920 --> 00:48:39,000 POLICY INTERCHANGE WITH ENGAGED 1213 00:48:39,000 --> 00:48:40,560 IN COLLABORATION. 1214 00:48:40,560 --> 00:48:46,240 WE DON'T FORCE POLICY IN FACT WE 1215 00:48:46,240 --> 00:48:47,760 COLLABORATE TO IN MATERIALS OF 1216 00:48:47,760 --> 00:48:49,520 WORK AND EMPLOYMENT-RELATED 1217 00:48:49,520 --> 00:48:51,320 FACETS LIKE ACCESSIBLE 1218 00:48:51,320 --> 00:48:53,800 TECHNOLOGY, TRANSPORTATION, 1219 00:48:53,800 --> 00:48:54,040 ETCETERA. 1220 00:48:54,040 --> 00:48:57,200 IF YOU FOR INSTANCE DO A SEARCH 1221 00:48:57,200 --> 00:49:00,880 ON GOOGLE OR BING FOR ODAT AND 1222 00:49:00,880 --> 00:49:03,040 STATE POLICY YOU CAN FIND MORE 1223 00:49:03,040 --> 00:49:04,520 ABOUT OUR WORK MATTERS REPORT 1224 00:49:04,520 --> 00:49:06,840 AND OTHER FOCUSES ON THE STATE 1225 00:49:06,840 --> 00:49:10,040 AND I CONCUR WITH WHAT WAS 1226 00:49:10,040 --> 00:49:11,600 SHARED ABOUT THAT ENGAGEMENT IN 1227 00:49:11,600 --> 00:49:12,880 TERMS OF AT THE STATE LOCAL 1228 00:49:12,880 --> 00:49:16,040 LEVEL IN ADDITION TO THE WORK 1229 00:49:16,040 --> 00:49:23,000 NATIONALLY AND THANK YOU ALSO, 1230 00:49:23,000 --> 00:49:26,600 JULIE, IS IT? 1231 00:49:26,600 --> 00:49:29,960 I'LL BE HAPPY TO COLLABORATE ON 1232 00:49:29,960 --> 00:49:32,120 YOUR STUDY BECAUSE I THINK IT 1233 00:49:32,120 --> 00:49:33,400 WOULD BE COMPLEMENTARY AND WE'RE 1234 00:49:33,400 --> 00:49:35,400 FOCUSSED ON POLICIES, PRACTICES 1235 00:49:35,400 --> 00:49:39,680 AND SOLUTIONS AND BARRIERS AND 1236 00:49:39,680 --> 00:49:42,840 IT'S MORE CENTERED ON THAT AND 1237 00:49:42,840 --> 00:49:44,480 YOUR SOUNDS MORE LIKE RESEARCH 1238 00:49:44,480 --> 00:49:49,960 AND WOULD BE COMPLIMENTARY TO 1239 00:49:49,960 --> 00:49:54,280 LEARN ABOUT QUALITATIVE OR 1240 00:49:54,280 --> 00:49:56,320 QUANTITATIVE STUDY AND IT MAY BE 1241 00:49:56,320 --> 00:49:57,960 HELPFUL FOR THAT AND OTHER 1242 00:49:57,960 --> 00:50:01,680 RESEARCH COMING OUT TO HELP 1243 00:50:01,680 --> 00:50:03,320 INFORMING THE PROJECT SUPPORT 1244 00:50:03,320 --> 00:50:08,640 SERVICES FOR EMPLOYMENT OF YOUNG 1245 00:50:08,640 --> 00:50:12,840 ADULTS IN THE AUTISM SPECTRUM 1246 00:50:12,840 --> 00:50:15,240 AND WHAT WE'RE THINKING ABOUT 1247 00:50:15,240 --> 00:50:16,960 FOR THE NEXT THREE YEARS THROUGH 1248 00:50:16,960 --> 00:50:18,840 2024 AND THAT INCLUDES ALSO WHAT 1249 00:50:18,840 --> 00:50:21,200 WE'RE LEARNING FOR THE LISTENING 1250 00:50:21,200 --> 00:50:21,920 SESSION ETCETERA. 1251 00:50:21,920 --> 00:50:25,920 WE CAN TALK OFF-LINE ON THAT BUT 1252 00:50:25,920 --> 00:50:28,240 I'M GLAD WE HAD CONVERGENCE ON 1253 00:50:28,240 --> 00:50:31,960 THIS AND THIS IS DELIGHTFUL THAT 1254 00:50:31,960 --> 00:50:37,320 FOLKS FEEL AS EQUALLY PASSIONATE 1255 00:50:37,320 --> 00:50:37,920 AND COMMUNICATION AND OTHER 1256 00:50:37,920 --> 00:50:39,520 QUALITY OF LIFE FOR CHILDREN, 1257 00:50:39,520 --> 00:50:45,280 YOUTH AND ADULTS ON THE AUTISM 1258 00:50:45,280 --> 00:50:46,280 SPECTRUM THROUGH THE LIFE 1259 00:50:46,280 --> 00:50:46,520 COURSE. 1260 00:50:46,520 --> 00:50:47,800 THIS IS WONDERFUL. 1261 00:50:47,800 --> 00:50:52,240 >> THANK YOU, SCOTT AND. 1262 00:50:52,240 --> 00:50:56,680 NEXT TO JENNY MAY FAN. 1263 00:50:56,680 --> 00:51:00,280 >> THANK YOU TO THE ORAL PUBLIC 1264 00:51:00,280 --> 00:51:02,120 COMMENTERS AND ALSO THOSE WHO 1265 00:51:02,120 --> 00:51:03,440 SUBMITTED WRITTEN COMMENTS TO 1266 00:51:03,440 --> 00:51:04,160 THE IACC. 1267 00:51:04,160 --> 00:51:09,960 I APPRECIATE PEOPLE WHO CHIMED 1268 00:51:09,960 --> 00:51:14,720 IN AND TO REITERATE WHAT OTHERS 1269 00:51:14,720 --> 00:51:16,240 HAVE SAID SUBMITTING COMMENTS 1270 00:51:16,240 --> 00:51:18,640 ABOUT AACUs AND MAKE BEING IT A 1271 00:51:18,640 --> 00:51:21,680 PRIORITY FOR RESEARCH AND THE 1272 00:51:21,680 --> 00:51:22,000 INVENTIONS. 1273 00:51:22,000 --> 00:51:27,520 I WANT TO ADD A PLUG ON THOSE 1274 00:51:27,520 --> 00:51:31,080 WHO ARE NON-NATIVE ENGLISH 1275 00:51:31,080 --> 00:51:31,800 COMMUNICA 1276 00:51:31,800 --> 00:51:32,120 COMMUNICATORS. 1277 00:51:32,120 --> 00:51:33,840 WHEN WE TALK ABOUT AACUs THERE'S 1278 00:51:33,840 --> 00:51:36,840 PLENTY OF FAMILIES WHO MAY NOT 1279 00:51:36,840 --> 00:51:39,040 BE SPEAKING ENGLISH AS THEIR 1280 00:51:39,040 --> 00:51:40,040 PRIMARY LANGUAGE MAYBE IT'S 1281 00:51:40,040 --> 00:51:41,520 THEIR SECOND OR THIRD. 1282 00:51:41,520 --> 00:51:43,360 IN THE CONVERSATION I HOPE WE 1283 00:51:43,360 --> 00:51:44,760 ALSO KEEP IN MIND THAT ENGLISH 1284 00:51:44,760 --> 00:51:48,040 MAY NOT BE A PRIMARY LANGUAGE 1285 00:51:48,040 --> 00:51:53,880 FOR CERTAIN AUTISTIC FAMILIES. 1286 00:51:53,880 --> 00:51:55,920 THREW. 1287 00:51:55,920 --> 00:51:57,400 >> THANK YOU FOR THE COMMENT, 1288 00:51:57,400 --> 00:51:57,600 JENNY. 1289 00:51:57,600 --> 00:51:59,880 WE HAVE A FEW MINUTES LEFT FOR 1290 00:51:59,880 --> 00:52:03,040 ANY OTHER COMMENTS ANYONE HAS. 1291 00:52:03,040 --> 00:52:05,240 DOES ANYBODY HAVE ANYTHING ELSE 1292 00:52:05,240 --> 00:52:06,480 THEY'D LIKE TO SHARE? 1293 00:52:06,480 --> 00:52:09,960 HARI, I SAW YOU TURNED ON YOUR 1294 00:52:09,960 --> 00:52:20,920 CAMERA. 1295 00:52:20,920 --> 00:52:23,360 >> I CAN SEND THE COMMENT. 1296 00:52:23,360 --> 00:52:24,560 >> PERFECT. 1297 00:52:24,560 --> 00:52:28,080 >> ALSO, AS EDLYN TOUCHED ON, 1298 00:52:28,080 --> 00:52:29,920 THERE'S A HUGE ISSUE AND SO MANY 1299 00:52:29,920 --> 00:52:32,840 THINGS GOING ON BEHIND THE 1300 00:52:32,840 --> 00:52:33,040 SCENES. 1301 00:52:33,040 --> 00:52:34,360 THERE'S ANXIETY AROUND BEING 1302 00:52:34,360 --> 00:52:36,840 EXPECTED TO TYPE AT THE SPEED OF 1303 00:52:36,840 --> 00:52:39,120 INSTANT SPOKEN LANGUAGE SO EACH 1304 00:52:39,120 --> 00:52:41,000 CONVERSATION HAS THE SAME 1305 00:52:41,000 --> 00:52:42,440 PRESSURE OF A HIGHER PRESSURE 1306 00:52:42,440 --> 00:52:42,800 INTERVIEW. 1307 00:52:42,800 --> 00:52:46,880 IT'S THE LACK OF BODY SCHEMA SO 1308 00:52:46,880 --> 00:52:49,800 TRYING TO DRIVE A CAR WITH A 1309 00:52:49,800 --> 00:52:50,840 LOOSE STEERING WHEEL WHILE 1310 00:52:50,840 --> 00:52:51,800 THINKING ON THE SPOT AND 1311 00:52:51,800 --> 00:52:53,480 THINKING OF COHERENT RESPONSES. 1312 00:52:53,480 --> 00:52:55,840 IT'S THE ADHD AND SENSORY STUFF 1313 00:52:55,840 --> 00:52:57,640 ALL WORKING TO DISTRACT YOU. 1314 00:52:57,640 --> 00:53:00,000 WE REALLY, REALLY NEED RESEARCH 1315 00:53:00,000 --> 00:53:02,480 TO UNDERSTANDING SENSORY AND 1316 00:53:02,480 --> 00:53:04,640 BODY SCHEMA ISSUES SO WE CAN 1317 00:53:04,640 --> 00:53:05,960 BETTER SUPPORT COMMUNICATION 1318 00:53:05,960 --> 00:53:10,760 CHALLENGES ITSELF. 1319 00:53:10,760 --> 00:53:13,960 >> THANK YOU SO MUCH FOR THAT 1320 00:53:13,960 --> 00:53:14,560 COMMENT, HARI. 1321 00:53:14,560 --> 00:53:17,400 AND THANK YOU STEVEN FOR 1322 00:53:17,400 --> 00:53:17,960 ASSISTING US IN READING THE 1323 00:53:17,960 --> 00:53:20,760 COMMENTS. 1324 00:53:20,760 --> 00:53:24,840 I HAVE TWO MINUTES LEFT. 1325 00:53:24,840 --> 00:53:25,400 ANY LAST COMMENTS BEFORE WE 1326 00:53:25,400 --> 00:53:36,280 BREAK AISHA. 1327 00:53:36,280 --> 00:53:41,960 >> I WANTED TO SAY THAT ALL THE 1328 00:53:41,960 --> 00:53:47,880 COMMENTS REGARDING ETIOLOGY OR 1329 00:53:47,880 --> 00:53:49,120 THE CAUSES OF AUTISM AND AN 1330 00:53:49,120 --> 00:53:49,840 APPRECIATE THE COMMITTEE MEMBERS 1331 00:53:49,840 --> 00:53:54,560 WHO PROVIDED COMMENTS. 1332 00:53:54,560 --> 00:53:56,040 I THINK A LOT OF TIMES PEOPLE 1333 00:53:56,040 --> 00:53:57,920 DON'T WANT TO FOCUS ON ETIOLOGY 1334 00:53:57,920 --> 00:53:59,840 AND THERE SHOULD BE A PRIORITY 1335 00:53:59,840 --> 00:54:02,400 AROUND SERVICES FOR PEOPLE WITH 1336 00:54:02,400 --> 00:54:04,040 AUTISM. 1337 00:54:04,040 --> 00:54:06,240 THIS DEMONSTRATES THERE IS STILL 1338 00:54:06,240 --> 00:54:08,400 SIGNIFICANT INTEREST IN WHAT 1339 00:54:08,400 --> 00:54:08,960 CAUSES AUTISM. 1340 00:54:08,960 --> 00:54:11,640 I WANT TO RESPOND TO SOME OF 1341 00:54:11,640 --> 00:54:15,160 THOSE COMMENTS SPECIFICALLY THE 1342 00:54:15,160 --> 00:54:18,840 ONES ASKING ABOUT PARENTS 1343 00:54:18,840 --> 00:54:20,800 PASSING GENETIC PREMARKERS FOR 1344 00:54:20,800 --> 00:54:22,320 AUTISM TO THEIR CHILDREN AND 1345 00:54:22,320 --> 00:54:24,360 POINT OUT THERE'S ONGOING 1346 00:54:24,360 --> 00:54:29,480 RESEARCH ESPECIALLY THROUGH THE- 1347 00:54:29,480 --> 00:54:32,320 SAFARI GROUP- MARKERS FOR 1348 00:54:32,320 --> 00:54:32,920 AUTISM TO THEIR CHILDREN AND 1349 00:54:32,920 --> 00:54:33,560 POINT OUT THERE'S ONGOING 1350 00:54:33,560 --> 00:54:34,200 RESEARCH ESPECIALLY THROUGH THE- 1351 00:54:34,200 --> 00:54:34,680 SAFARI GROUPMARKERS FOR 1352 00:54:34,680 --> 00:54:35,280 AUTISM TO THEIR CHILDREN AND 1353 00:54:35,280 --> 00:54:35,840 POINT OUT THERE'S ONGOING 1354 00:54:35,840 --> 00:54:36,440 RESEARCH ESPECIALLY THROUGH THE- 1355 00:54:36,440 --> 00:54:38,000 SAFARI GROUP I ALSO WANTED TO 1356 00:54:38,000 --> 00:54:39,040 SAY THERE WAS ONE PARTICULAR 1357 00:54:39,040 --> 00:54:43,440 COMMENT THAT STILL FOCUSSED ON 1358 00:54:43,440 --> 00:54:49,240 VACCINES AND I WANT IT RECORDED 1359 00:54:49,240 --> 00:54:51,880 THAT'S A DANGEROUS DIRECTION TO 1360 00:54:51,880 --> 00:54:53,920 TRY TO POINT ANYBODY TOWARDS 1361 00:54:53,920 --> 00:54:55,960 VACCINES ESPECIALLY AN IN ERA 1362 00:54:55,960 --> 00:54:56,880 WITH AN ONGOING PANDEMIC. 1363 00:54:56,880 --> 00:55:00,120 I'D LIKE TO SAY AS AN 1364 00:55:00,120 --> 00:55:01,960 EPIDEMIOLOGIST THAT STUDIES HAVE 1365 00:55:01,960 --> 00:55:06,960 SHOWN THAT VACCINES ARE NOT 1366 00:55:06,960 --> 00:55:07,960 WITHIN THE CAUSAL PATHWAY OF 1367 00:55:07,960 --> 00:55:09,960 AUTISM. 1368 00:55:09,960 --> 00:55:15,360 THANK YOU. 1369 00:55:15,360 --> 00:55:17,200 >> THANK YOU. 1370 00:55:17,200 --> 00:55:18,760 ALL RIGHT, WE'RE AT 1:55 SO 1371 00:55:18,760 --> 00:55:22,160 WE'RE RIGHT ON TAKE TO TAKE A 1372 00:55:22,160 --> 00:55:25,440 BREAK. 1373 00:55:25,440 --> 00:55:28,760 WE WILL BE RETURNING AT 2:10 FOR 1374 00:55:28,760 --> 00:55:29,960 THE NEXT SESSION WE'RE LOOKING 1375 00:55:29,960 --> 00:55:33,200 FORWARD TO ON PERSPECTIVES ON 1376 00:55:33,200 --> 00:55:34,080 ADDRESSING DIVERSE COMMUNICATION 1377 00:55:34,080 --> 00:55:35,040 IN AUTISM. 1378 00:55:35,040 --> 00:55:36,840 SO JOSH, DO YOU HAVE ANY OTHER 1379 00:55:36,840 --> 00:55:38,040 COMMENTS BEFORE WE GO TO THE 1380 00:55:38,040 --> 00:55:44,920 BREAK? 1381 00:55:44,920 --> 00:55:46,480 AND NOT HEARING ANY -- 1382 00:55:46,480 --> 00:55:48,120 >> SORRY, I WANT TO THANK 1383 00:55:48,120 --> 00:55:50,800 EVERYONE FOR THEIR ACTIVE AND 1384 00:55:50,800 --> 00:55:52,120 THOUGHTFUL CONSIDERATION OF THE 1385 00:55:52,120 --> 00:55:53,320 PUBLIC COMMENTS AND I'M LOOKING 1386 00:55:53,320 --> 00:55:56,240 FORWARD TO IN THE CONTEXT OF ALL 1387 00:55:56,240 --> 00:55:59,160 THE COMMENTS ON ASSISTED 1388 00:55:59,160 --> 00:56:00,640 COMMUNICATION TO HEARING ABOUT 1389 00:56:00,640 --> 00:56:03,160 THE LATEST RESEARCH AND ALSO 1390 00:56:03,160 --> 00:56:04,400 HEARING FROM INDIVIDUALS' LIVED 1391 00:56:04,400 --> 00:56:05,760 EXPERIENCE USING THE TECHNOLOGY. 1392 00:56:05,760 --> 00:56:06,720 LOOKING FORWARD TO THE PANEL AND 1393 00:56:06,720 --> 00:56:14,800 SEE YOU AFTER THE BREAK. 1394 00:56:14,800 --> 00:56:16,800 >> IT'S MY PLEASURE TO WELCOME 1395 00:56:16,800 --> 00:56:17,720 EVERYONE BACK. 1396 00:56:17,720 --> 00:56:20,120 IN THE NEXT SECTION WE WILL HAVE 1397 00:56:20,120 --> 00:56:23,280 A PANEL ON PERSPECTIVES ON 1398 00:56:23,280 --> 00:56:23,920 ADDRESSING DIVERSE COMMUNICATION 1399 00:56:23,920 --> 00:56:25,440 NEEDS IN AUTISM. 1400 00:56:25,440 --> 00:56:28,480 WE'VE HEARD FROM MANY OF YOU OUT 1401 00:56:28,480 --> 00:56:30,400 THERE IN THE COMMUNITY AS WELL 1402 00:56:30,400 --> 00:56:33,840 AS AROUND THE TABLE, THE VIRTUAL 1403 00:56:33,840 --> 00:56:36,560 TABLE AROUND THE IMPORTANCE OF 1404 00:56:36,560 --> 00:56:37,400 UNDERSTANDING THE NEEDS OF 1405 00:56:37,400 --> 00:56:38,160 AUTISTIC INDIVIDUALS MINIMALLY 1406 00:56:38,160 --> 00:56:40,480 VERBAL OR NON-SPEAKING AND THOSE 1407 00:56:40,480 --> 00:56:46,720 WHO MAY USING OR BENEFIT FROM 1408 00:56:46,720 --> 00:56:49,160 ALTERNATIVE AND AUGMENTATIVE 1409 00:56:49,160 --> 00:56:51,160 METHODS AND WE HEARD THAT IN THE 1410 00:56:51,160 --> 00:56:52,520 COMMENTS WRITTEN AND ORAL 1411 00:56:52,520 --> 00:56:53,200 DELIVERED. 1412 00:56:53,200 --> 00:56:59,240 IN RESPONSE TO THE FEEDBACK, I 1413 00:56:59,240 --> 00:57:09,680 WANT TO THANK SUSAN AND STAFF ON 1414 00:57:09,680 --> 00:57:12,400 ASSEMBLING THE PANEL ON 1415 00:57:12,400 --> 00:57:13,000 PERSPECTIVES OF AUTISTIC 1416 00:57:13,000 --> 00:57:14,200 INDIVIDUALS AND FAMILY MEMBERS. 1417 00:57:14,200 --> 00:57:20,200 I WANT TO START BY INTRODUCING 1418 00:57:20,200 --> 00:57:23,120 JUDITH COOPER. 1419 00:57:23,120 --> 00:57:25,800 SHE HAS LONG BEEN A DESIGNATED 1420 00:57:25,800 --> 00:57:30,760 ALTERNATE ON THE IACC WHERE SHE 1421 00:57:30,760 --> 00:57:32,200 REPRESENTS THE INSTITUTE AND 1422 00:57:32,200 --> 00:57:34,600 NICHD SHE OVERSEES RESEARCH 1423 00:57:34,600 --> 00:57:37,840 RELATED TO AUTISM AND 1424 00:57:37,840 --> 00:57:41,200 COMMUNICATION BOTH AT NIDCD AND 1425 00:57:41,200 --> 00:57:42,600 ACROSS NIH. 1426 00:57:42,600 --> 00:57:43,800 JUDITH, A PLEASURE TO WELCOMING 1427 00:57:43,800 --> 00:57:45,280 YOU HERE AND LOOKING FORWARD TO 1428 00:57:45,280 --> 00:57:51,000 YOUR INTRODUCTION TO THE PANEL. 1429 00:57:51,000 --> 00:57:51,920 >> THANK YOU, JOSH. 1430 00:57:51,920 --> 00:57:53,720 GOOD AFTERNOON, EVERYONE. 1431 00:57:53,720 --> 00:57:55,240 THANK YOU TO DR. GORDON AND 1432 00:57:55,240 --> 00:57:57,600 DR. DANIELS FOR AN OPPORTUNITY 1433 00:57:57,600 --> 00:58:03,120 TO KICK OFF OUR PANEL ON 1434 00:58:03,120 --> 00:58:06,480 COMMUNICATION AND AUTISM. 1435 00:58:06,480 --> 00:58:08,440 MY FOCUS IS TO PROVIDE YOU WITH 1436 00:58:08,440 --> 00:58:12,000 A BRIEF OVERVIEW OF NIH'S ROLE 1437 00:58:12,000 --> 00:58:14,000 RELATED TO COMMUNICATION IN 1438 00:58:14,000 --> 00:58:14,240 AUTISM. 1439 00:58:14,240 --> 00:58:15,680 I'LL ADDRESS THE JOINT ACTIONS 1440 00:58:15,680 --> 00:58:19,520 AND ATTENTION TO THIS TOPIC THAT 1441 00:58:19,520 --> 00:58:22,280 HAVE BEEN PAID BY NIH THROUGH 1442 00:58:22,280 --> 00:58:25,120 THE YEARS PRIMARILY BY NIH 1443 00:58:25,120 --> 00:58:27,280 COLLEAGUES AND THEIR INSTITUTES 1444 00:58:27,280 --> 00:58:28,800 REPRESENTED BOTH HERE ON THE 1445 00:58:28,800 --> 00:58:31,080 IACC AND LISTED ON THE SLIDE. 1446 00:58:31,080 --> 00:58:32,960 THERE ARE OTHER FEDERAL AGENCIES 1447 00:58:32,960 --> 00:58:35,280 SUCH AS THE DEPARTMENT OF 1448 00:58:35,280 --> 00:58:39,160 EDUCATION, DOD, HRSA AND 1449 00:58:39,160 --> 00:58:39,800 NON-FEDERAL ORGANIZATIONS WHO 1450 00:58:39,800 --> 00:58:41,760 ALSO SUPPORTED RESEARCH ON THE 1451 00:58:41,760 --> 00:58:43,440 TOPIC BUT I WON'T BE COVERING 1452 00:58:43,440 --> 00:58:44,480 THEIR SUPPORT TODAY. 1453 00:58:44,480 --> 00:58:47,200 MY SECOND PURPOSE IS TO 1454 00:58:47,200 --> 00:58:48,600 HIGHLIGHT SOME ACTIVITIES 1455 00:58:48,600 --> 00:58:50,160 SPECIFICALLY LED BY MY INSTITUTE 1456 00:58:50,160 --> 00:58:52,280 THE NATIONAL INSTITUTE ON 1457 00:58:52,280 --> 00:58:55,640 DEAFNESS AND OTHER COMMUNICATION 1458 00:58:55,640 --> 00:58:58,000 DISORDERS. 1459 00:58:58,000 --> 00:59:00,160 AS WE RECOGNIZE AND WE CERTAINLY 1460 00:59:00,160 --> 00:59:01,840 HEARD TODAY, INDIVIDUALS ON THE 1461 00:59:01,840 --> 00:59:04,000 AUTISM SPECTRUM MAY HAVE A 1462 00:59:04,000 --> 00:59:05,280 VARIETY OF COMMUNICATION ISSUES 1463 00:59:05,280 --> 00:59:07,160 AND CHALLENGES AS ILLUSTRATED ON 1464 00:59:07,160 --> 00:59:11,360 THE SLIDE AND THOSE ISSUES AND 1465 00:59:11,360 --> 00:59:13,440 CHALLENGES CAN VARY IN SEVERITY 1466 00:59:13,440 --> 00:59:13,960 AT DIFFERENT POINTS IN 1467 00:59:13,960 --> 00:59:19,560 DEVELOPMENT. 1468 00:59:19,560 --> 00:59:32,400 THIS COMMUNICATION -- SORRY. 1469 00:59:32,400 --> 00:59:34,000 THIS COMMUNICATION HAS LONG BEEN 1470 00:59:34,000 --> 00:59:36,320 RECOGNIZED BY NIH REFLECTED IN 1471 00:59:36,320 --> 00:59:40,400 DECADES OF FUNDING OF 1472 00:59:40,400 --> 00:59:41,080 INVESTIGATOR-INITIATED RESEARCH 1473 00:59:41,080 --> 00:59:41,800 GRANTS AS WELL AS SPECIAL 1474 00:59:41,800 --> 00:59:44,200 REQUESTS FOR NETWORKS, CENTERS 1475 00:59:44,200 --> 00:59:48,920 AND OTHER SOLICITATIONS. 1476 00:59:48,920 --> 00:59:52,800 AS FAR BACK AS 1997 WITH THE 1477 00:59:52,800 --> 00:59:55,280 START OF THE AUTISM PROGRAM AND 1478 00:59:55,280 --> 00:59:59,200 WITH EACH ISSUANCE OF REQUEST 1479 00:59:59,200 --> 01:00:06,040 FOR CENTERS AND NETWORKS, WE 1480 01:00:06,040 --> 01:00:10,440 HIGHLIGHTED COMMUNICATION AND 1481 01:00:10,440 --> 01:00:15,320 AUTISM SPECTRUM DISORDER AND WE 1482 01:00:15,320 --> 01:00:17,120 LOOKED AT DISORDERS OF 1483 01:00:17,120 --> 01:00:19,280 COMMUNICATION AND ASSESSMENT AND 1484 01:00:19,280 --> 01:00:23,320 INTERVENTIONS FOR NON-VERBAL 1485 01:00:23,320 --> 01:00:27,160 SCHOOL AGE CHILDREN WITH AUTISM. 1486 01:00:27,160 --> 01:00:29,040 NOT EVERY AUTISM RESEARCHER CAN 1487 01:00:29,040 --> 01:00:30,640 OR SHOULD LEAD A LARGE NETWORK 1488 01:00:30,640 --> 01:00:34,280 AND THUS THE NIH OFFERED SINCE 1489 01:00:34,280 --> 01:00:39,280 1998 AND RE-ISSUED EVERY FEW 1490 01:00:39,280 --> 01:00:43,000 YEARS SOLICITATION WITH RESEARCH 1491 01:00:43,000 --> 01:00:44,520 AND SUPPORT FOR RESEARCH ON 1492 01:00:44,520 --> 01:00:45,840 COMMUNICATION WAS NOTED. 1493 01:00:45,840 --> 01:00:47,200 ON THE SLIDE YOU CAN SEE 1494 01:00:47,200 --> 01:00:49,000 EXAMPLES OF OUR WORDING THAT HAS 1495 01:00:49,000 --> 01:00:51,200 APPEARED THROUGH THE YEARS AS WE 1496 01:00:51,200 --> 01:00:53,360 POINTED RESEARCHERS TO 1497 01:00:53,360 --> 01:00:57,360 PARTICULAR TOPICS OF INTEREST TO 1498 01:00:57,360 --> 01:00:59,240 THE NIH INCLUDING COMMUNICATION 1499 01:00:59,240 --> 01:01:01,600 SKILLS, VARIOUS IMPAIRMENTS THAT 1500 01:01:01,600 --> 01:01:04,000 IMPACT COMMUNICATION, PREDICTORS 1501 01:01:04,000 --> 01:01:10,400 OF DEVELOPING EXPRESSIVE 1502 01:01:10,400 --> 01:01:11,320 LANGUAGE ABILITIES AND 1503 01:01:11,320 --> 01:01:13,120 INTERVENTIONS FOCUSSED ON 1504 01:01:13,120 --> 01:01:13,440 COMMUNICATION. 1505 01:01:13,440 --> 01:01:16,400 LET ME NOW SHIFT TO NIDCD AND 1506 01:01:16,400 --> 01:01:18,400 HIGHLIGHT SOME OTHER SPECIFIC 1507 01:01:18,400 --> 01:01:19,320 ACTIVITIES RELEVANT TO OUR 1508 01:01:19,320 --> 01:01:26,120 TOPIC. 1509 01:01:26,120 --> 01:01:27,720 WE SUPPORT RESEARCH AND RESEARCH 1510 01:01:27,720 --> 01:01:28,480 TRAINING IN THE NORMAL AND 1511 01:01:28,480 --> 01:01:30,360 DISORDER PROCESSES OF HEARING, 1512 01:01:30,360 --> 01:01:32,600 BALANCE, TASTE, SMELL, VOICE, 1513 01:01:32,600 --> 01:01:34,400 SPEECH AND LANGUAGE. 1514 01:01:34,400 --> 01:01:39,920 NIDCD HAS A LONG COMMITMENT TO 1515 01:01:39,920 --> 01:01:41,320 AND SUPPORT OF AUTISM RESEARCH 1516 01:01:41,320 --> 01:01:43,880 BEYOND THE ACTIVITIES MENTIONED. 1517 01:01:43,880 --> 01:01:46,200 WITHOUT OUR RESEARCH SUPPORT NOT 1518 01:01:46,200 --> 01:01:47,280 SURPRISINGLY, PRIMARILY FOCUSSED 1519 01:01:47,280 --> 01:01:48,440 ON SPEECH AND LANGUAGE 1520 01:01:48,440 --> 01:01:52,240 DIFFERENCES AND CHALLENGES, BUT 1521 01:01:52,240 --> 01:01:55,280 ALSO INCLUDING OTHER AREAS SUCH 1522 01:01:55,280 --> 01:02:01,240 AS HEARING AND TASTE. 1523 01:02:01,240 --> 01:02:02,840 MOST THE RESEARCH ON 1524 01:02:02,840 --> 01:02:03,920 COMMUNICATION AND AUTISM IS 1525 01:02:03,920 --> 01:02:07,160 SUPPORTED BY NIDCD AND NOTED IN 1526 01:02:07,160 --> 01:02:07,360 BLUE. 1527 01:02:07,360 --> 01:02:13,200 THANKS TO DR. DANIELS FOR 1528 01:02:13,200 --> 01:02:14,200 PROVIDING THE DATA AND THE 1529 01:02:14,200 --> 01:02:19,320 SLIDE. 1530 01:02:19,320 --> 01:02:21,480 HERE'S BROAD THEMES IN OUR 1531 01:02:21,480 --> 01:02:22,600 RESEARCH PROJECTS. 1532 01:02:22,600 --> 01:02:26,200 COMMUNICATION PROFILES, 1533 01:02:26,200 --> 01:02:29,840 MINIMALLY VERBAL INDIVIDUALS AND 1534 01:02:29,840 --> 01:02:30,600 ALTERNATIVE AND AUGMENTATIVE 1535 01:02:30,600 --> 01:02:35,280 COMMUNICATION APPROACHES AND 1536 01:02:35,280 --> 01:02:36,240 COMMUNICATION DIFFERENCE AND 1537 01:02:36,240 --> 01:02:39,440 DISORDERS IN ASD SIBLINGS. 1538 01:02:39,440 --> 01:02:58,240 SO WHAT HAS NIDCD DONE WE ISSUED 1539 01:02:58,240 --> 01:02:59,920 RESEARCH SOLICITATIONS. 1540 01:02:59,920 --> 01:03:01,600 APOLOGIES FOR MY SLIDE IT'S GOT 1541 01:03:01,600 --> 01:03:03,880 A MIND OF ITS OWN. 1542 01:03:03,880 --> 01:03:09,800 BUT IN 2009 THINGS WENT IN A NEW 1543 01:03:09,800 --> 01:03:10,280 DIRECTION. 1544 01:03:10,280 --> 01:03:12,600 IT ALL STARTED WITH A MOTHER'S 1545 01:03:12,600 --> 01:03:14,560 ADVOCACY FOR HER NON-VERBAL 1546 01:03:14,560 --> 01:03:14,920 CHILD. 1547 01:03:14,920 --> 01:03:17,080 SHE HIGHLIGHTED TO ME THAT AT 1548 01:03:17,080 --> 01:03:20,640 THAT TIME NON-VERBAL 1549 01:03:20,640 --> 01:03:22,240 LOW-COMMUNICATING, MINIMALLY 1550 01:03:22,240 --> 01:03:23,520 VERBAL CHILDREN WITH AUTISM WERE 1551 01:03:23,520 --> 01:03:26,200 A NEGLECTED SUB GROUP OF THE 1552 01:03:26,200 --> 01:03:28,160 SPECTRUM TYPICALLY EXCLUDED FROM 1553 01:03:28,160 --> 01:03:31,160 RESEARCH PROJECTS AND NOT A 1554 01:03:31,160 --> 01:03:34,000 FOCUS OF RESEARCH. 1555 01:03:34,000 --> 01:03:37,760 SHE BEMOANED NON-VERBAL WERE 1556 01:03:37,760 --> 01:03:39,320 LOW-FUNCTIONING WITH A COMMON 1557 01:03:39,320 --> 01:03:40,200 PERCEPTION THESE INDIVIDUALS 1558 01:03:40,200 --> 01:03:42,040 HAVE LOW INTELLECTUAL ABILITIES 1559 01:03:42,040 --> 01:03:44,120 AND STRESSED THIS PERCEPTION WAS 1560 01:03:44,120 --> 01:03:46,200 IN PART BECAUSE AT THAT TIME, 1561 01:03:46,200 --> 01:03:49,440 MANY SUCH INDIVIDUALS HAD NO WAY 1562 01:03:49,440 --> 01:03:50,920 TO DEMONSTRATE THEIR COGNITIVE 1563 01:03:50,920 --> 01:03:51,400 CAPACITIES AND THEIR 1564 01:03:51,400 --> 01:03:56,000 COMMUNICATION ABILITIES. 1565 01:03:56,000 --> 01:03:58,000 THE ASKED HOW CAN WE CHANGE 1566 01:03:58,000 --> 01:03:58,480 THIS? 1567 01:03:58,480 --> 01:04:01,240 HOW CAN WE GET THIS POPULATION 1568 01:04:01,240 --> 01:04:03,360 INCLUDED IN ONGOING RESEARCH? 1569 01:04:03,360 --> 01:04:05,560 HOW DO WE INCREASE RESEARCH 1570 01:04:05,560 --> 01:04:08,240 INTEREST AND FUNDING ABOUT THIS 1571 01:04:08,240 --> 01:04:08,560 POPULATION? 1572 01:04:08,560 --> 01:04:13,320 WE ALL RECOGNIZE AND WE AGREE 1573 01:04:13,320 --> 01:04:15,040 AND MONTHS LATER THE NIDCD LED 1574 01:04:15,040 --> 01:04:16,880 AND OTHER INSTITUTES JOINED IN 1575 01:04:16,880 --> 01:04:18,560 CREATING FIRST A PLANNING 1576 01:04:18,560 --> 01:04:21,200 COMMITTEE AND THEN A WORKSHOP IN 1577 01:04:21,200 --> 01:04:24,560 APRIL 2010 TO FOCUS ON A SUB 1578 01:04:24,560 --> 01:04:28,240 GROUP OF CHILDREN WITH ASD WHO 1579 01:04:28,240 --> 01:04:29,200 HAD NOT DEVELOPED FUNCTIONAL 1580 01:04:29,200 --> 01:04:30,720 VERBAL LANGUAGE BY THE AGE OF 5 1581 01:04:30,720 --> 01:04:32,200 AND THE WORKSHOP WOULD ADDRESS 1582 01:04:32,200 --> 01:04:33,400 THE QUESTIONS ON THE SLIDE. 1583 01:04:33,400 --> 01:04:34,280 WHO ARE THESE CHILDREN AND WHAT 1584 01:04:34,280 --> 01:04:36,600 DO WE KNOW WITH THEIR 1585 01:04:36,600 --> 01:04:37,840 DEVELOPMENTAL TRAJECTORIES? 1586 01:04:37,840 --> 01:04:39,680 HOW CAN WE ASSESS THEIR SKILLS 1587 01:04:39,680 --> 01:04:40,960 AND KNOWLEDGE ACROSS DIFFERENT 1588 01:04:40,960 --> 01:04:43,040 DOMAINS RELEVANT TO LANGUAGE? 1589 01:04:43,040 --> 01:04:45,200 AND WHAT TREATMENTS AND 1590 01:04:45,200 --> 01:04:50,240 INTERVENTIONS ARE EFFECTIVE IN 1591 01:04:50,240 --> 01:04:52,440 IMPROVING SPOKEN LANGUAGE IN 1592 01:04:52,440 --> 01:04:53,480 THESE CHILDREN. 1593 01:04:53,480 --> 01:04:54,800 THE SCIENTIFIC KNOWLEDGE WAS 1594 01:04:54,800 --> 01:04:56,200 DISCUSSED, CRITICAL GAPS WERE 1595 01:04:56,200 --> 01:04:58,200 IDENTIFIED AS WERE RESEARCH 1596 01:04:58,200 --> 01:04:58,800 OPPORTUNITIES AND THE LINK ON 1597 01:04:58,800 --> 01:05:00,920 THE SLIDE CAN TAKE YOU TO A 1598 01:05:00,920 --> 01:05:05,000 SUMMARY OF THAT WORKSHOP AND THE 1599 01:05:05,000 --> 01:05:05,320 PARTICIPANTS. 1600 01:05:05,320 --> 01:05:08,240 AFTER THE WORKSHOP THE NOTABLE 1601 01:05:08,240 --> 01:05:11,040 SHIFT OCCURRED. 1602 01:05:11,040 --> 01:05:13,760 FIRST, THERE WAS A REQUEST FOR 1603 01:05:13,760 --> 01:05:15,360 APPLICATIONS TARGETED RESEARCH 1604 01:05:15,360 --> 01:05:16,800 ON NON-VERBAL SCHOOL AGE 1605 01:05:16,800 --> 01:05:19,040 CHILDREN WITH AUTISM THAT WAS 1606 01:05:19,040 --> 01:05:23,360 LED BY NIDCD BUT ALSO SUPPORT 1607 01:05:23,360 --> 01:05:25,320 NIMH AND THIS FUNDING 1608 01:05:25,320 --> 01:05:27,080 OPPORTUNITY PROVIDED COMPETITIVE 1609 01:05:27,080 --> 01:05:29,040 SUPPLEMENT TO RO1 HOLDERS OF 1610 01:05:29,040 --> 01:05:31,000 CLINICAL AUTISM GRANTS TO FOCUS 1611 01:05:31,000 --> 01:05:33,160 ON THE CHARACTERIZATION OF THE 1612 01:05:33,160 --> 01:05:35,120 POPULATION, TREATMENT PILOT 1613 01:05:35,120 --> 01:05:35,720 STUDIES AND ASSESSMENT PILOT 1614 01:05:35,720 --> 01:05:39,320 STUDIES. 1615 01:05:39,320 --> 01:05:41,840 SUBSEQUENT TO THE WORKSHOP, A 1616 01:05:41,840 --> 01:05:44,200 SMALL GROUP OF NIH STAFF AND 1617 01:05:44,200 --> 01:05:47,800 AUTISM EXPERTS WERE ORGANIZED TO 1618 01:05:47,800 --> 01:05:50,520 FOCUS ON ONE WORKSHOP 1619 01:05:50,520 --> 01:05:52,840 RECOMMENDATION, HOW TO BEST 1620 01:05:52,840 --> 01:05:54,200 ASSESS THIS POPULATION. 1621 01:05:54,200 --> 01:05:57,400 THE BETWEEN 2010 AND 2012 THIS 1622 01:05:57,400 --> 01:05:59,040 GROUP DEALT WITH PARTICULAR 1623 01:05:59,040 --> 01:05:59,720 AREAS OF ASSESSMENT IMPORTANT 1624 01:05:59,720 --> 01:06:02,040 FOR THIS POPULATION AND THEN 1625 01:06:02,040 --> 01:06:05,240 FINALLY IN 2013 AS AN OUT GROWTH 1626 01:06:05,240 --> 01:06:07,960 AND RESULT OF THE WORKSHOP, TWO 1627 01:06:07,960 --> 01:06:09,000 IMPORTANT PUBLICATIONS APPEARED 1628 01:06:09,000 --> 01:06:11,240 AND ARE NOTED ON THE SLIDE. 1629 01:06:11,240 --> 01:06:14,120 ONE, MINIMALLY VERBAL AND 1630 01:06:14,120 --> 01:06:15,320 NEGLECTED END OF THE SPECTRUM 1631 01:06:15,320 --> 01:06:17,920 AND ASSESSING THE MINIMALLY 1632 01:06:17,920 --> 01:06:20,200 VERBAL SCHOOL AGE CHILD. 1633 01:06:20,200 --> 01:06:23,280 THIS NEW FOCUS AND ATTENTION 1634 01:06:23,280 --> 01:06:23,560 CONTINUED. 1635 01:06:23,560 --> 01:06:26,200 IN 2011, NIH ISSUED A REQUEST 1636 01:06:26,200 --> 01:06:28,600 FOR APPLICATIONS ON PSYCHOSOCIAL 1637 01:06:28,600 --> 01:06:29,760 AND BEHAVIORAL INTERVENTIONS AND 1638 01:06:29,760 --> 01:06:32,680 IT WAS AGREED THE FUNDING 1639 01:06:32,680 --> 01:06:33,760 OPPORTUNITY WOULD INCLUDE 1640 01:06:33,760 --> 01:06:36,240 REQUEST FOR RESEARCH ON STUDIES 1641 01:06:36,240 --> 01:06:38,000 OF ADAPTIVE OR NOVEL TREATMENTS 1642 01:06:38,000 --> 01:06:43,280 FOR NON-VERBAL SCHOOL-AGED 1643 01:06:43,280 --> 01:06:43,680 CHILDREN WITH ASD. 1644 01:06:43,680 --> 01:06:48,640 THEN IN 2012, THE NIDCD 1645 01:06:48,640 --> 01:06:50,480 STRATEGIC PLAN, WHICH IDENTIFIED 1646 01:06:50,480 --> 01:06:52,200 RESEARCH PRIORITY FOR THE NEXT 1647 01:06:52,200 --> 01:06:55,000 FIVE YEARS INCLUDED A NEW 1648 01:06:55,000 --> 01:06:55,240 DIRECTION. 1649 01:06:55,240 --> 01:06:57,000 NIDCD'S COMMITTED TO SUPPORTING 1650 01:06:57,000 --> 01:06:59,760 RESEARCH EFFORTS TO IMPROVE THE 1651 01:06:59,760 --> 01:07:03,160 DIAGNOSIS OF ASD AND TO DEVELOP 1652 01:07:03,160 --> 01:07:05,400 NEW OR IMPROVED EXISTING 1653 01:07:05,400 --> 01:07:07,760 TREATMENTS OF LANGUAGE DEFICITS 1654 01:07:07,760 --> 01:07:10,760 OF CHILDREN WITH ASD ESPECIALLY 1655 01:07:10,760 --> 01:07:13,480 SCHOOL AGE CHILDREN WITH ASD WHO 1656 01:07:13,480 --> 01:07:17,400 REMAIN NON VERBAL. 1657 01:07:17,400 --> 01:07:18,840 FYI, SUBSEQUENT NIDCD STRATEGIC 1658 01:07:18,840 --> 01:07:21,520 PLANS CONTAIN SIMILAR WORDING 1659 01:07:21,520 --> 01:07:24,760 AND INCLUDE PRIORITY AREAS 1660 01:07:24,760 --> 01:07:27,280 RELATED TO AUGMENTATIVE AND 1661 01:07:27,280 --> 01:07:27,800 ALTERNATIVE COMMUNICATION 1662 01:07:27,800 --> 01:07:30,160 APPROACH. 1663 01:07:30,160 --> 01:07:35,040 AND ALSO IN 2012 ONE OF THE 1664 01:07:35,040 --> 01:07:40,800 PRESTIGIOUS AND HIGHLY 1665 01:07:40,800 --> 01:07:42,840 COMPETITIVE CENTERS LOOKING AT 1666 01:07:42,840 --> 01:07:45,640 INTERVENTIONS WAS AWARDED TO A 1667 01:07:45,640 --> 01:07:49,960 PANEL SPEAKER. 1668 01:07:49,960 --> 01:07:55,640 AND FINALLY, IN 2019 AN NIDCD 1669 01:07:55,640 --> 01:07:56,280 CLINICAL RESEARCH CENTER 1670 01:07:56,280 --> 01:07:58,520 ENTITLED PREDICTING AND 1671 01:07:58,520 --> 01:08:01,480 OPTIMIZING LANGUAGE OUTCOMES IN 1672 01:08:01,480 --> 01:08:02,800 MINIMALLY VERBAL CHILDREN WITH 1673 01:08:02,800 --> 01:08:07,320 AUTISM SPECTRUM DISORDER WAS 1674 01:08:07,320 --> 01:08:10,480 AWARDED. 1675 01:08:10,480 --> 01:08:14,040 IN SUM, I HOPE YOU HAVE A BETTER 1676 01:08:14,040 --> 01:08:18,720 SENSE OF NIH'S AND NIDCD'S LONG 1677 01:08:18,720 --> 01:08:19,600 STANDING ENCOURAGEMENT, SUPPORT 1678 01:08:19,600 --> 01:08:23,280 AND FUNDING OF RESEARCH ON THE 1679 01:08:23,280 --> 01:08:24,240 COMMUNICATION CHALLENGES AND 1680 01:08:24,240 --> 01:08:27,280 NEEDS OF AUTISTIC INDIVIDUALS OF 1681 01:08:27,280 --> 01:08:28,640 ALL AGES. 1682 01:08:28,640 --> 01:08:31,120 WE ALL RECOGNIZE MANY RESEARCH 1683 01:08:31,120 --> 01:08:31,680 QUESTIONS AND MANY ISSUES 1684 01:08:31,680 --> 01:08:36,360 REMAIN. 1685 01:08:36,360 --> 01:08:38,200 AND MOST IMPORTANTLY RESEARCH 1686 01:08:38,200 --> 01:08:40,400 OPPORTUNITIES AND NEEDS COME 1687 01:08:40,400 --> 01:08:43,600 FROM ALL VENUES. 1688 01:08:43,600 --> 01:08:46,440 THE SCIENTIFIC COMMUNITY, OUR 1689 01:08:46,440 --> 01:08:48,040 OWN RESEARCH SOLICITATIONS, 1690 01:08:48,040 --> 01:08:51,680 ADVISORY PANELS SUCH AS THE IACC 1691 01:08:51,680 --> 01:08:53,360 AND THE DISCUSSIONS WE HEARD 1692 01:08:53,360 --> 01:08:55,240 TODAY AND SOMETIMES FROM THE 1693 01:08:55,240 --> 01:08:59,240 PLEA OF A CONCERNED MOTHER. 1694 01:08:59,240 --> 01:08:59,880 THANK YOU. 1695 01:08:59,880 --> 01:09:02,200 >> THANK YOU VERY MUCH, JUDITH I 1696 01:09:02,200 --> 01:09:04,760 APPRECIATE THE OVERVIEW OF THE 1697 01:09:04,760 --> 01:09:06,760 DEMONSTRABLE COMMITMENTS OF THE 1698 01:09:06,760 --> 01:09:08,480 NIH IN THIS AREA AND AS YOU 1699 01:09:08,480 --> 01:09:09,760 MENTIONED OF COURSE THERE ARE 1700 01:09:09,760 --> 01:09:10,920 OTHER PARTNERS AROUND THE TABLE 1701 01:09:10,920 --> 01:09:13,440 AS WAS ALSO MENTIONED DURING THE 1702 01:09:13,440 --> 01:09:14,120 PUBLIC COMMENT WHO ALSO SUPPORT 1703 01:09:14,120 --> 01:09:15,720 RESEARCH IN THIS AREA. 1704 01:09:15,720 --> 01:09:18,320 NOW WE'RE GOING HEAR FROM SOME 1705 01:09:18,320 --> 01:09:19,680 OF THE SCIENTISTS FOR CONDUCTING 1706 01:09:19,680 --> 01:09:19,960 RESEARCH. 1707 01:09:19,960 --> 01:09:21,280 THE FIRST PRESENTATION IS GOING 1708 01:09:21,280 --> 01:09:22,600 TO BE BY TWO SCIENTISTS 1709 01:09:22,600 --> 01:09:26,200 SUPPORTED ADSUPPORT 1710 01:09:26,200 --> 01:09:31,280 ED AS MENTIONED BY NIDCD AND 1711 01:09:31,280 --> 01:09:34,880 I'LL PRESENT THEM TOGETHER AND 1712 01:09:34,880 --> 01:09:35,400 DR. FLUSBERG WILL START. 1713 01:09:35,400 --> 01:09:38,200 DR. FLUSBERG A MEMBER OF OUR 1714 01:09:38,200 --> 01:09:38,800 IACC AND PROFESSOR IN THE 1715 01:09:38,800 --> 01:09:40,280 DEPARTMENT OF PSYCHOLOGICAL AND 1716 01:09:40,280 --> 01:09:42,200 BRAIN SCIENCES AND THE DIRECTOR 1717 01:09:42,200 --> 01:09:44,520 OF THE CENTER FOR AUTISM 1718 01:09:44,520 --> 01:09:48,920 RESEARCH EXCELLENCE AT BOSTON 1719 01:09:48,920 --> 01:09:49,280 UNIVERSITY. 1720 01:09:49,280 --> 01:09:52,640 JOINING DR. TAGER FLUSBERG IS 1721 01:09:52,640 --> 01:09:55,560 DR. KASARI AT THE UCLA GRADUATE 1722 01:09:55,560 --> 01:09:58,840 SCHOOL OF EDUCATION AND 1723 01:09:58,840 --> 01:10:03,360 PROFESSOR OF PSYCHIATRY AT THE 1724 01:10:03,360 --> 01:10:05,080 DAVID GEFFEN SCHOOL OF MEDICINE. 1725 01:10:05,080 --> 01:10:07,040 THEY'LL BE PRESENTING TOGETHER 1726 01:10:07,040 --> 01:10:08,200 ON THE TOPIC OF ADVANCING 1727 01:10:08,200 --> 01:10:11,440 RESEARCH ON MINIMALLY VERBAL 1728 01:10:11,440 --> 01:10:21,320 ASD. 1729 01:10:21,320 --> 01:10:22,960 >> THANK YOU, WE'LL PRESENT 1730 01:10:22,960 --> 01:10:24,880 SEQUENTIALLY BECAUSE I THINK 1731 01:10:24,880 --> 01:10:26,840 WHAT I'M GOING DO IS PRESENT 1732 01:10:26,840 --> 01:10:31,280 SOME RESEARCH THAT FOCUSES ON 1733 01:10:31,280 --> 01:10:32,440 TWO CRITICAL QUESTIONS THAT 1734 01:10:32,440 --> 01:10:35,480 SERVE AS A BACKDROP TO WHAT 1735 01:10:35,480 --> 01:10:38,200 WE'LL HEAR FROM DR. KASARI. 1736 01:10:38,200 --> 01:10:41,000 I'M A RESEARCH SCIENTIST AND MY 1737 01:10:41,000 --> 01:10:45,800 BACKGROUND AND TRAINING IS IN 1738 01:10:45,800 --> 01:10:46,680 DEVELOPMENTAL LINGUISTICS. 1739 01:10:46,680 --> 01:10:49,240 I FOCUSSED ON LANGUAGE AND 1740 01:10:49,240 --> 01:10:53,840 COMMUNITY BOTH IN AUTISM AND 1741 01:10:53,840 --> 01:10:56,640 ALSO IN RELATED NEURO 1742 01:10:56,640 --> 01:11:01,560 DEVELOPMENT DISORDERS BUT IT 1743 01:11:01,560 --> 01:11:03,480 WASN'T UNTIL 15 YEARS AGO I TURN 1744 01:11:03,480 --> 01:11:06,120 MID RESEARCH TO THOSE THAT 1745 01:11:06,120 --> 01:11:09,040 ACQUIRED LIMITED OR NO SPOKEN 1746 01:11:09,040 --> 01:11:11,600 LANGUAGE AND I'M GRATEFUL TO THE 1747 01:11:11,600 --> 01:11:14,200 LEADERSHIP AND SUPPORT FROM 1748 01:11:14,200 --> 01:11:15,920 DR. COOPER AT THE NIDCD AS WELL 1749 01:11:15,920 --> 01:11:19,560 AS LEADERS FROM FOUNDATIONS SUCH 1750 01:11:19,560 --> 01:11:20,200 INCLUDING AUTISM SPEAKS AND THE 1751 01:11:20,200 --> 01:11:33,600 SIMONS FOUNDATION. 1752 01:11:33,600 --> 01:11:40,000 AND THOSE WHO DEDICATED THEIR 1753 01:11:40,000 --> 01:11:47,280 LIVES TO THESE INDIVIDUALS FROM 1754 01:11:47,280 --> 01:11:53,400 WHOM WE LEARN. 1755 01:11:53,400 --> 01:11:55,640 I'M GOING PRESENT TWO AREAS OF 1756 01:11:55,640 --> 01:11:58,920 WORK THAT WE HAVE BEEN DOING AND 1757 01:11:58,920 --> 01:12:00,400 I'M PLEASED TO HAVE THIS 1758 01:12:00,400 --> 01:12:00,680 OPPORTUNITY. 1759 01:12:00,680 --> 01:12:03,280 I THINK IT DOVETAILS WELL WITH 1760 01:12:03,280 --> 01:12:04,360 SOME OF THE DISCUSSION EARLIER 1761 01:12:04,360 --> 01:12:07,440 AND AS I SAID SEGUES INTO THE 1762 01:12:07,440 --> 01:12:10,560 NEXT PRESENTATIONS. 1763 01:12:10,560 --> 01:12:13,040 SO FIRST I'LL TALK ABOUT NOVEL 1764 01:12:13,040 --> 01:12:15,360 APPROACHES TO ASSESSING 1765 01:12:15,360 --> 01:12:17,520 LANGUAGE. 1766 01:12:17,520 --> 01:12:21,600 IF WE CAN'T ASSESS LANGUAGE BOTH 1767 01:12:21,600 --> 01:12:25,160 SPOKEN AND PERHAPS OTHER MEANS 1768 01:12:25,160 --> 01:12:26,840 OF COMMUNICATION, IF WE CAN'T 1769 01:12:26,840 --> 01:12:29,000 ASSESS THAT ACCURATELY IN AN 1770 01:12:29,000 --> 01:12:32,520 INDIVIDUAL, WE DON'T HAVE A 1771 01:12:32,520 --> 01:12:35,040 FOUNDATION ON WHICH TO BUILD ANY 1772 01:12:35,040 --> 01:12:36,680 KIND OF INTERVENTIONAL 1773 01:12:36,680 --> 01:12:38,200 THERAPEUTIC APPROACH. 1774 01:12:38,200 --> 01:12:40,480 AND SECONDLY I'M GOING TO 1775 01:12:40,480 --> 01:12:41,560 EXPLORE THE MORE BASIC QUESTION 1776 01:12:41,560 --> 01:12:47,280 OF WHY SPOKEN LANGUAGE MIGHT BE 1777 01:12:47,280 --> 01:12:54,400 SO PROFOUNDLY IMPAIRED IN 1778 01:12:54,400 --> 01:12:55,200 AUTISM. 1779 01:12:55,200 --> 01:12:56,560 THERE'S ENORMOUS HETEROGENEITY 1780 01:12:56,560 --> 01:13:01,520 AND WE DO HAVE TO TREAT EACH 1781 01:13:01,520 --> 01:13:03,360 INDIVIDUAL AS AN INDIVIDUAL 1782 01:13:03,360 --> 01:13:11,320 BECAUSE NO ONE SIZE FITS ALL. 1783 01:13:11,320 --> 01:13:13,840 SO WE DID CALL THIS THE 1784 01:13:13,840 --> 01:13:16,360 NEGLECTED END OF THE SPECTRUM 1785 01:13:16,360 --> 01:13:21,040 WHICH WAS PERFECTLY TRUE BUT A 1786 01:13:21,040 --> 01:13:23,360 PARENT RECENTLY SAID WELL, WE 1787 01:13:23,360 --> 01:13:25,160 FEEL WE'RE COMPLETELY FORGOTTEN 1788 01:13:25,160 --> 01:13:27,320 SO I RENAMED OUR GROUP THE 1789 01:13:27,320 --> 01:13:32,200 FORGOTTEN END OF THE SPECTRUM. 1790 01:13:32,200 --> 01:13:35,880 SO FIRST I JUST WANT TO PRESENT 1791 01:13:35,880 --> 01:13:38,200 SOME VERY BASIC DATA ON THE 1792 01:13:38,200 --> 01:13:39,960 RECEPTIVE AND EXPRESSIVE 1793 01:13:39,960 --> 01:13:43,160 LANGUAGE SKILLS AND THIS IS 1794 01:13:43,160 --> 01:13:46,440 BASED ON A LARGE COHORT THAT WE 1795 01:13:46,440 --> 01:13:47,640 HAD EVALUATED. 1796 01:13:47,640 --> 01:13:50,080 THE EVALUATION WAS PARENT 1797 01:13:50,080 --> 01:13:50,320 REPORT. 1798 01:13:50,320 --> 01:13:53,640 WE PROVIDED A LARGE LIST OF 1799 01:13:53,640 --> 01:13:56,200 WORDS AND THE PARENT CHECKED OFF 1800 01:13:56,200 --> 01:13:58,560 WHICH WORDS THEIR CHILD WHO WAS 1801 01:13:58,560 --> 01:14:02,000 BETWEEN THE AGES OF 5 AND 16 1802 01:14:02,000 --> 01:14:03,360 WHICH WORDS THEY UNDERSTOOD AND 1803 01:14:03,360 --> 01:14:07,360 WHICH WORDS THEY WERE ABLE TO 1804 01:14:07,360 --> 01:14:11,200 EXPRESS. 1805 01:14:11,200 --> 01:14:13,440 SO THIS SHOWS THEIR EXPRESSIVE 1806 01:14:13,440 --> 01:14:16,480 VOCABULARY AND YOU CAN SEE THE 1807 01:14:16,480 --> 01:14:18,680 LARGEST OF PARENTS REPORTED VERY 1808 01:14:18,680 --> 01:14:20,240 FEW OR ZERO WORDS AND THERE'S 1809 01:14:20,240 --> 01:14:26,920 NOT MUCH BEYOND THAT. 1810 01:14:26,920 --> 01:14:33,760 FOR RECEPTIVE WE SEE A DIFFERENT 1811 01:14:33,760 --> 01:14:38,200 DISTRIBUTION BECAUSE SOME OF THE 1812 01:14:38,200 --> 01:14:43,200 PARTICIPANTS WERE EXPECTED TO 1813 01:14:43,200 --> 01:14:46,400 HAVE LITTLE UNDERSTANDING OF 1814 01:14:46,400 --> 01:14:47,320 SPOKEN WORDS BUT THERE'S MORE 1815 01:14:47,320 --> 01:14:48,400 VARIABILITY WITHIN THAT AND WE 1816 01:14:48,400 --> 01:14:49,840 WERE INTERESTED IN HOW CAN WE 1817 01:14:49,840 --> 01:14:57,400 CAPTURE RECEPTIVE VOCABULARY 1818 01:14:57,400 --> 01:14:58,840 THAT'S WHAT WE TURNED OUR 1819 01:14:58,840 --> 01:14:59,600 ATTENTION TO INITIALLY HOW TO DO 1820 01:14:59,600 --> 01:15:04,400 THIS. 1821 01:15:04,400 --> 01:15:06,400 STANDARDIZED TESTS AS WE KNOW 1822 01:15:06,400 --> 01:15:08,240 MAY NOT ALWAYS CAPTURE THE RANGE 1823 01:15:08,240 --> 01:15:10,880 OF RECEPTIVE OR EVEN EXPRESSIVE 1824 01:15:10,880 --> 01:15:14,240 LANGUAGE ABILITIES IN THIS 1825 01:15:14,240 --> 01:15:17,760 POPULATION AND WHILE WE WROTE A 1826 01:15:17,760 --> 01:15:19,360 PAPER HOW TO ASSESS WE DID IN 1827 01:15:19,360 --> 01:15:23,360 FACT AGREE THAT THERE WAS 1828 01:15:23,360 --> 01:15:25,000 SIGNIFICANT LIMITATIONS. 1829 01:15:25,000 --> 01:15:27,320 SO WE NEED TO EXPLORE NOVEL 1830 01:15:27,320 --> 01:15:31,320 APPROACHES FROM THE STANDARDIZED 1831 01:15:31,320 --> 01:15:38,200 SO WE LOOKED AT ALTERNATIVE WAYS 1832 01:15:38,200 --> 01:15:39,800 TO EXPRESS RECEPTIVE 1833 01:15:39,800 --> 01:15:40,680 VOCABULARIES. 1834 01:15:40,680 --> 01:15:43,880 WE ADMINISTERED TO A SMALL 1835 01:15:43,880 --> 01:15:46,320 COHORT OF ADOLESCENTS. 1836 01:15:46,320 --> 01:15:48,720 THE PEABODY PICTURE VOCABULARY 1837 01:15:48,720 --> 01:15:51,280 TEST, NEXT, YOU SHOW AN ARRAY OF 1838 01:15:51,280 --> 01:15:52,720 PICTURES, SAY A WORD AND THE 1839 01:15:52,720 --> 01:15:55,280 PARTICIPANT HAS TO POINT TO THE 1840 01:15:55,280 --> 01:15:59,280 PICTURE THAT MATCHES THE WORD. 1841 01:15:59,280 --> 01:16:00,720 THEN WE HAD A PARENT REPORT WORD 1842 01:16:00,720 --> 01:16:04,720 LIST AND THAT'S A METHOD THAT'S 1843 01:16:04,720 --> 01:16:06,840 BEEN WIDELY VALIDATED IN THE 1844 01:16:06,840 --> 01:16:11,280 FIELD OF LANGUAGE DEVELOPMENT. 1845 01:16:11,280 --> 01:16:17,160 THEN WE TRIED MOFL METHODS. 1846 01:16:17,160 --> 01:16:19,920 FIRST WE PICKED UP ON THE IDEA 1847 01:16:19,920 --> 01:16:21,440 OF EYE TRACKING. 1848 01:16:21,440 --> 01:16:23,760 COULD WE USE EYE TRACKING? 1849 01:16:23,760 --> 01:16:29,000 IN THIS METHOD WE SAY A WORD, 1850 01:16:29,000 --> 01:16:29,200 DOG. 1851 01:16:29,200 --> 01:16:32,400 AND THE PARTICIPANT IS NOT 1852 01:16:32,400 --> 01:16:34,720 INSTRUCTED IN ANY WAY BUT YOU 1853 01:16:34,720 --> 01:16:38,920 SEE FROM THE GREEN DOTS THOSE 1854 01:16:38,920 --> 01:16:42,000 GREEN DOTS REPRESENT THE NUMBER 1855 01:16:42,000 --> 01:16:43,960 OF TIMES THE PARTICIPANT LOOKS 1856 01:16:43,960 --> 01:16:47,240 AT THAT PICTURE VERSUS A PICTURE 1857 01:16:47,240 --> 01:16:53,400 YOU SEE A BIRD. 1858 01:16:53,400 --> 01:16:56,080 WE THEN ADAPTED USING A TOUCH 1859 01:16:56,080 --> 01:16:56,320 SCREEN. 1860 01:16:56,320 --> 01:16:58,040 THIS WAS KIND OF A BIT OLD 1861 01:16:58,040 --> 01:16:58,280 SCHOOL. 1862 01:16:58,280 --> 01:16:59,840 YOU CAN TELL WE DID THIS QUITE A 1863 01:16:59,840 --> 01:17:01,400 LONG TIME AGO. 1864 01:17:01,400 --> 01:17:03,160 TODAY WE WOULD CERTAINLY BE 1865 01:17:03,160 --> 01:17:07,480 USING AN iPAD WHICH EVERYBODY 1866 01:17:07,480 --> 01:17:13,560 ENJOYS SO MUCH MORE. 1867 01:17:13,560 --> 01:17:14,760 THIS SHOWS ACROSS SEVERAL BLOCKS 1868 01:17:14,760 --> 01:17:17,360 OF TRIALS, IN RED YOU CAN SEE 1869 01:17:17,360 --> 01:17:19,280 THE NUMBER OF TIMES THE 1870 01:17:19,280 --> 01:17:23,600 ADOLESCENTS IN OUR SAMPLE LOOKED 1871 01:17:23,600 --> 01:17:25,360 AT HOW MUCH TIME THEY SPENT 1872 01:17:25,360 --> 01:17:27,840 LOOKING AT THE TARGET PICTURE, 1873 01:17:27,840 --> 01:17:31,280 THE DOG OR WE HAD A LARGE NUMBER 1874 01:17:31,280 --> 01:17:34,320 OF WORDS THAT WE TESTED INSTEAD 1875 01:17:34,320 --> 01:17:35,840 OF HOW MUCH TIME THEY SPENT 1876 01:17:35,840 --> 01:17:36,800 LOOKING AT THE BIRD. 1877 01:17:36,800 --> 01:17:43,640 AND WHAT YOU CAN SEE IS THAT EYE 1878 01:17:43,640 --> 01:17:44,760 TRACKING WAS USEFUL. 1879 01:17:44,760 --> 01:17:48,120 AND WE LOOKED AT THE VALIDITY 1880 01:17:48,120 --> 01:17:51,040 AND CORRELATION, HOW WELL 1881 01:17:51,040 --> 01:17:52,720 MATCHED, HOW CONSISTENT WAS 1882 01:17:52,720 --> 01:17:54,040 RESPONDING ACROSS OUR NOVEL 1883 01:17:54,040 --> 01:17:59,400 METHODS OF EYE TRACKING AND 1884 01:17:59,400 --> 01:18:00,600 TOUCH SCREEN AND TRADITIONAL 1885 01:18:00,600 --> 01:18:03,320 PARENT RECORD AND PPT AND YOU 1886 01:18:03,320 --> 01:18:07,200 CAN SEE THE CORRELATIONS BETWEEN 1887 01:18:07,200 --> 01:18:08,480 THE NOVEL METHODS AND THE 1888 01:18:08,480 --> 01:18:13,240 STANDARD METHODS ARE STRONG AND 1889 01:18:13,240 --> 01:18:14,800 HIGHLY SIGNIFICANT HOWEVER, I 1890 01:18:14,800 --> 01:18:17,000 WANT TO OUT IN OUT WHAT I'M NOT 1891 01:18:17,000 --> 01:18:19,120 PRESENTING HERE IS THERE WERE 1892 01:18:19,120 --> 01:18:22,120 SIGNIFICANT INDIVIDUAL 1893 01:18:22,120 --> 01:18:23,160 DIFFERENCES IN WHICH METHOD WAS 1894 01:18:23,160 --> 01:18:23,400 OPTIMAL. 1895 01:18:23,400 --> 01:18:26,920 SO WE DID HAVE PARTICIPANTS WHO 1896 01:18:26,920 --> 01:18:28,760 WERE FANTASTIC WITH THE TOUCH 1897 01:18:28,760 --> 01:18:31,280 SCREEN BUT WHOSE EYE TRACKING 1898 01:18:31,280 --> 01:18:34,600 WAS NOT A RELIABLE INDICATOR OF 1899 01:18:34,600 --> 01:18:42,960 THEIR UNDERSTANDING OF WORDS. 1900 01:18:42,960 --> 01:18:45,000 WE THEN WANTED TO DEVELOP NOVEL 1901 01:18:45,000 --> 01:18:46,280 APPROACHES. 1902 01:18:46,280 --> 01:18:48,400 THIS IS NOT REALLY NOVEL BUT WE 1903 01:18:48,400 --> 01:18:52,320 WANTED TO CAPTURE SPOKEN 1904 01:18:52,320 --> 01:18:55,240 LANGUAGE THEIR EXPRESSIVE 1905 01:18:55,240 --> 01:18:55,800 LANGUAGE AND COMMUNICATION 1906 01:18:55,800 --> 01:19:01,360 SKILLS. 1907 01:19:01,360 --> 01:19:04,480 THERE'S A LONG TRADITION TO 1908 01:19:04,480 --> 01:19:07,680 COLLECT NATURAL LANGUAGE SAMPLES 1909 01:19:07,680 --> 01:19:11,080 AN INDIVIDUAL, CHILD INTERACTING 1910 01:19:11,080 --> 01:19:13,600 WITH ANOTHER INDIVIDUAL FOR THE 1911 01:19:13,600 --> 01:19:15,040 MOST PART FOR VERY YOUNG 1912 01:19:15,040 --> 01:19:19,920 CHILDREN WE RELY ON PARENT-CHILD 1913 01:19:19,920 --> 01:19:23,280 INTERACTION AND FOR OLDER 1914 01:19:23,280 --> 01:19:27,760 INDIVIDUALS WE RELY ON AN 1915 01:19:27,760 --> 01:19:28,040 EXAMINER. 1916 01:19:28,040 --> 01:19:29,600 WHAT WE DIDN'T HAVE IN THE FIELD 1917 01:19:29,600 --> 01:19:31,280 WAS A STANDARD PROTOCOL FOR 1918 01:19:31,280 --> 01:19:34,000 WHICH WE COULD COLLECT A SAMPLE 1919 01:19:34,000 --> 01:19:35,840 AND THIS IS CRITICAL BECAUSE 1920 01:19:35,840 --> 01:19:39,000 WITHOUT A STANDARD PROTOCOL, WE 1921 01:19:39,000 --> 01:19:43,280 CAN'T MAKE COMPARISONS ACROSS 1922 01:19:43,280 --> 01:19:44,320 DIFFERENT STUDIES AND APPROACHES 1923 01:19:44,320 --> 01:19:49,640 TO LOOKING AT SPOKEN LANGUAGE. 1924 01:19:49,640 --> 01:19:54,520 WE DEVELOPED ELSA ELICITING 1925 01:19:54,520 --> 01:19:58,200 LANGUAGE SAMPLES FOR ANALYSIS. 1926 01:19:58,200 --> 01:20:00,640 AND WE DEVELOPED TWO VERSIONS. 1927 01:20:00,640 --> 01:20:03,320 ONE FOR TODDLERS AND PRE COOLERS 1928 01:20:03,320 --> 01:20:09,840 AND ELSA A IS FOR OLDER CHILDREN 1929 01:20:09,840 --> 01:20:10,440 AND ADOLESCENTS. 1930 01:20:10,440 --> 01:20:13,200 IT'S A SEQUENCE OF DIFFERENT 1931 01:20:13,200 --> 01:20:14,640 ACTIVITIES THAT WE SELECTED 1932 01:20:14,640 --> 01:20:21,120 BASED ON A LOT OF PILOTING WORK 1933 01:20:21,120 --> 01:20:26,240 AND WE FOUND DIFFERENT 1934 01:20:26,240 --> 01:20:28,400 ACTIVITIES KEEPS THE INDIVIDUAL 1935 01:20:28,400 --> 01:20:32,000 HIGHLY ENGAGED AND ENJOYED AND 1936 01:20:32,000 --> 01:20:34,680 WE WERE ABLE TO COLLECT SAMPLES 1937 01:20:34,680 --> 01:20:38,240 AVERAGING 20 TO 25 MINUTES 1938 01:20:38,240 --> 01:20:41,840 WITHOUT PARTICIPANTS DECIDING 1939 01:20:41,840 --> 01:20:43,160 THEY REALLY DIDN'T WANT TO BE 1940 01:20:43,160 --> 01:20:44,720 INVOLVED IN THIS ANYMORE. 1941 01:20:44,720 --> 01:20:56,200 IT WAS FUN FOR THEM. 1942 01:20:56,200 --> 01:20:58,640 WE WANTED TO LOOK AT WHO COULD 1943 01:20:58,640 --> 01:20:59,240 ADMINISTER ELSA. 1944 01:20:59,240 --> 01:21:01,200 WE DEVELOPED IT IN THE LAB AND 1945 01:21:01,200 --> 01:21:01,760 HAD OUR TRAINED EXAMINERS DO 1946 01:21:01,760 --> 01:21:07,320 THIS. 1947 01:21:07,320 --> 01:21:11,200 QUE WA -- WE WANTED TO KNOW COULD 1948 01:21:11,200 --> 01:21:12,400 PARENTS DO THIS IN THE HOME 1949 01:21:12,400 --> 01:21:13,280 BECAUSE THAT WOULD OPEN UP A 1950 01:21:13,280 --> 01:21:17,640 WHOLE OTHER WAY OF PICKING UP AN 1951 01:21:17,640 --> 01:21:19,320 INDIVIDUAL CHILD'S EXPRESSIVE 1952 01:21:19,320 --> 01:21:35,400 LANGUAGE SKILLS. 1953 01:21:35,400 --> 01:21:38,240 AND WE TESTED THEM IN THE LAB 1954 01:21:38,240 --> 01:21:41,360 WITH THE EXAMINER AND THOSE SAME 1955 01:21:41,360 --> 01:21:43,280 ONES THAT PARENTS WE SENT THE 1956 01:21:43,280 --> 01:21:49,560 PARENTS HOME WITH A KIT AND 1957 01:21:49,560 --> 01:21:51,800 INSTRUCTIONS AND VIDEOS AND 1958 01:21:51,800 --> 01:21:52,440 HELPED GUIDE THEM AND LEFT IT TO 1959 01:21:52,440 --> 01:22:24,520 THEM. 1960 01:22:24,520 --> 01:22:26,280 SAME FOR FREQUENCY OF WORDS AND 1961 01:22:26,280 --> 01:22:27,320 CONVERSATIONAL TERMS. 1962 01:22:27,320 --> 01:22:28,840 THE PARENTS ARE DOING SO MUCH 1963 01:22:28,840 --> 01:22:31,720 MORE AND THIS IS IN THE SAME 1964 01:22:31,720 --> 01:22:34,920 UNIT OF TIME PER MINUTE BUT THEY 1965 01:22:34,920 --> 01:22:39,280 ARE JUST MUCH MORE ACTIVELY 1966 01:22:39,280 --> 01:22:47,840 ENGAGED WITH THEIR CHILD. 1967 01:22:47,840 --> 01:22:50,640 WELL, WHAT ABOUT THE CHILD? 1968 01:22:50,640 --> 01:22:52,360 THEY TOO SPOKE TWICE AS MUCH 1969 01:22:52,360 --> 01:22:59,280 WITH THEIR PARENT THAN THE 1970 01:22:59,280 --> 01:23:00,840 EXAMINERS TWICE AS MANY WORDS 1971 01:23:00,840 --> 01:23:02,920 AND ABOUT TWICE AS MANY 1972 01:23:02,920 --> 01:23:03,400 CONVERSATIONAL TERMS. 1973 01:23:03,400 --> 01:23:06,400 THERE'S OF COURSE ENORMOUS 1974 01:23:06,400 --> 01:23:08,320 VARIABILITY BUT WE FOUND 1975 01:23:08,320 --> 01:23:11,320 CONSISTENTLY PARENTS WERE REALLY 1976 01:23:11,320 --> 01:23:14,200 USEFUL IN ELICITING THESE 1977 01:23:14,200 --> 01:23:14,840 EXPRESSIVE LANGUAGE SAMPLES FROM 1978 01:23:14,840 --> 01:23:17,480 THEIR CHILDREN. 1979 01:23:17,480 --> 01:23:20,000 AND WE THINK THIS IS VERY 1980 01:23:20,000 --> 01:23:22,720 PROMISING AND WE'VE BEEN VERY 1981 01:23:22,720 --> 01:23:26,280 EXCITED TO SEE MORE AND MORE 1982 01:23:26,280 --> 01:23:28,800 PAPERS RECENTLY RETURNING TO THE 1983 01:23:28,800 --> 01:23:35,200 IDEA THAT THE WAY WE SHOULD BE 1984 01:23:35,200 --> 01:23:36,600 ASSESSING LANGUAGE IS THROUGH 1985 01:23:36,600 --> 01:23:37,480 NATURAL LANGUAGE SAMPLING. 1986 01:23:37,480 --> 01:23:40,600 SO NOW LET ME TURN TO THE SECOND 1987 01:23:40,600 --> 01:23:43,960 PART OF MY TALK, WHY DON'T THEY 1988 01:23:43,960 --> 01:23:45,600 LEARN TO SPEAK SPOKEN LANGUAGE? 1989 01:23:45,600 --> 01:23:57,240 WHAT IS GOING ON HERE? 1990 01:23:57,240 --> 01:24:00,240 THERE'S MANY POTENTIAL 1991 01:24:00,240 --> 01:24:01,440 EXPLANATIONS AND WE'RE 1992 01:24:01,440 --> 01:24:02,320 SCRATCHING THE SURFACE ON WHAT 1993 01:24:02,320 --> 01:24:06,200 WE MANAGED TO UNCOVER SO FAR. 1994 01:24:06,200 --> 01:24:11,000 WE BEGAN BY ASKING ABOUT 1995 01:24:11,000 --> 01:24:12,760 BEHAVIORAL PREDICTORS, IMPAIRED 1996 01:24:12,760 --> 01:24:16,200 UNDERSTANDING OF INTENTIONALITY 1997 01:24:16,200 --> 01:24:19,360 AND COMMUNICATION OR JOINT 1998 01:24:19,360 --> 01:24:23,240 ATTENTION SKILLS, SYMBOLIC 1999 01:24:23,240 --> 01:24:24,680 DEFICITS REPRESENTED THROUGH 2000 01:24:24,680 --> 01:24:27,120 PLAY, IMPAIRED IMITATION SKILLS 2001 01:24:27,120 --> 01:24:31,200 WHICH WE EVALUATE USING MANUAL 2002 01:24:31,200 --> 01:24:33,880 IMITATION, CAN THEY COPY OBJECT 2003 01:24:33,880 --> 01:24:38,720 AND HAND MOVEMENTS AND ALSO 2004 01:24:38,720 --> 01:24:42,080 INTELLECTUAL DISABILITY OR THE 2005 01:24:42,080 --> 01:24:43,480 INDIVIDUAL'S LEVEL OF NON-VERBAL 2006 01:24:43,480 --> 01:24:49,360 COGNITION. 2007 01:24:49,360 --> 01:24:51,120 WE WERE ALSO INTERESTED IN 2008 01:24:51,120 --> 01:24:51,760 EXPLORING SPEECH MOTOR 2009 01:24:51,760 --> 01:24:55,160 IMPAIRMENTS IN THIS POPULATION. 2010 01:24:55,160 --> 01:24:57,000 FINALLY, I'LL TALK ABOUT 2011 01:24:57,000 --> 01:24:59,280 AUDITORY PROCESSING IMPAIRMENTS 2012 01:24:59,280 --> 01:25:02,320 WHICH WE HYPOTHESIZE WILL BE 2013 01:25:02,320 --> 01:25:03,480 MOST RELATED TO THE VARIATION 2014 01:25:03,480 --> 01:25:07,400 AND RECEPTIVE LANGUAGE SKILLS 2015 01:25:07,400 --> 01:25:13,560 THAT I TALKED ABOUT EARLIER. 2016 01:25:13,560 --> 01:25:18,680 LET ME TALK ABOUT THE BEHAVIORAL 2017 01:25:18,680 --> 01:25:21,680 CORRELATES OF EXPRESSIVE 2018 01:25:21,680 --> 01:25:21,960 LANGUAGE. 2019 01:25:21,960 --> 01:25:24,800 WE HAD ALMOST 60 ADOLESCENTS 5 2020 01:25:24,800 --> 01:25:30,360 TO 16 YEARS OLD AND WE HAD 2021 01:25:30,360 --> 01:25:32,280 OBJECTIVE MEASURES OF DIFFERENT 2022 01:25:32,280 --> 01:25:34,600 ASPECTS OF JOINT ATTENTION FROM 2023 01:25:34,600 --> 01:25:36,520 BEHAVIORAL REGULATION TO 2024 01:25:36,520 --> 01:25:38,040 INITIATION TO RESPONSE TO JOINT 2025 01:25:38,040 --> 01:25:40,160 ATTENTION AND OBJECTIVE MEASURE 2026 01:25:40,160 --> 01:25:44,320 OF THEIR DEVELOPMENTAL PLAY 2027 01:25:44,320 --> 01:25:47,000 SKILLS, IMITATION, NON-VERBAL 2028 01:25:47,000 --> 01:25:49,760 COGNITION AND AGE WHICH VARIED. 2029 01:25:49,760 --> 01:25:52,120 WE ASKED TO WHAT EXTENT ARE 2030 01:25:52,120 --> 01:25:55,320 THESE CORRELATED SO THEIR 2031 01:25:55,320 --> 01:25:56,600 EXPRESSIVE VOCABULARY? 2032 01:25:56,600 --> 01:26:00,600 WHAT WE FOUND WAS THAT IN THESE 2033 01:26:00,600 --> 01:26:01,760 OLDER INDIVIDUALS JOINT 2034 01:26:01,760 --> 01:26:04,200 ATTENTION WAS NOT A SIGNIFICANT 2035 01:26:04,200 --> 01:26:07,280 PREDICTOR AND NEITHER WAS AGE. 2036 01:26:07,280 --> 01:26:10,040 WE DID FIND HOWEVER, THAT 2037 01:26:10,040 --> 01:26:12,680 COGNITIVE LEVEL, IMITATION AND 2038 01:26:12,680 --> 01:26:16,320 PLAY WERE ALL SIGNIFICANTLY 2039 01:26:16,320 --> 01:26:18,360 RELATED AND EVEN WHEN WE 2040 01:26:18,360 --> 01:26:21,120 CONTROLLED FOR NON-VERBAL 2041 01:26:21,120 --> 01:26:24,760 COGNITION, PLAY AND IMITATION, 2042 01:26:24,760 --> 01:26:27,280 TWO FOUNDATIONAL SOCIAL 2043 01:26:27,280 --> 01:26:29,440 COMMUNICATION SKILLS WERE 2044 01:26:29,440 --> 01:26:30,800 SIGNIFICANTLY CORRELATED. 2045 01:26:30,800 --> 01:26:32,680 BUT WHEN WE ASKED STATISTICALLY 2046 01:26:32,680 --> 01:26:36,680 WHAT'S THE MOST SIGNIFICANT 2047 01:26:36,680 --> 01:26:42,560 PREDICTOR, THE ONE THAT CAME OUT 2048 01:26:42,560 --> 01:26:43,600 WAS IMITATION. 2049 01:26:43,600 --> 01:26:45,760 SO THOSE OLDER CHILDREN AND 2050 01:26:45,760 --> 01:26:47,240 ADOLESCENT WHO'S HAD BETTER 2051 01:26:47,240 --> 01:26:50,360 IMITATION SKILLS WOULD HAVE 2052 01:26:50,360 --> 01:26:51,400 SOMEWHAT HIGHER EXPRESSIVE 2053 01:26:51,400 --> 01:26:51,800 VOCABULARY. 2054 01:26:51,800 --> 01:26:55,160 WHAT I THINK THIS WORK ON 2055 01:26:55,160 --> 01:26:55,800 BEHAVIORAL CORRELATES TELLS US 2056 01:26:55,800 --> 01:26:58,400 IS THAT IT'S REALLY IMPORTANT TO 2057 01:26:58,400 --> 01:27:01,440 BE PAYING ATTENTION TO THE 2058 01:27:01,440 --> 01:27:02,600 BEHAVIORAL PROFILE OF AN 2059 01:27:02,600 --> 01:27:05,000 INDIVIDUAL BECAUSE WE NEED TO 2060 01:27:05,000 --> 01:27:06,680 THINK ABOUT PERHAPS TRAINING 2061 01:27:06,680 --> 01:27:09,200 SOME OF THESE CRITICAL SKILLS. 2062 01:27:09,200 --> 01:27:11,280 THE REASON JOINT ATTENTION WAS 2063 01:27:11,280 --> 01:27:13,400 NOT SIGNIFICANTLY CORRELATED IN 2064 01:27:13,400 --> 01:27:15,200 THESE OLDER INDIVIDUALS WAS THAT 2065 01:27:15,200 --> 01:27:19,200 MANY OF THEM IN FACT DID HAVE 2066 01:27:19,200 --> 01:27:21,880 JOINT ATTENTION SKILLS. 2067 01:27:21,880 --> 01:27:23,240 THAT'S NOT TRUE FOR MUCH YOUNGER 2068 01:27:23,240 --> 01:27:25,840 CHILDREN WITH AUTISM WHERE WE 2069 01:27:25,840 --> 01:27:28,400 NEED TO FOCUS OUR INTERVENTIONS 2070 01:27:28,400 --> 01:27:31,240 ON JOINT ATTENTION AS A 2071 01:27:31,240 --> 01:27:33,400 FOUNDATIONAL PRECURSOR TO 2072 01:27:33,400 --> 01:27:34,840 LANGUAGE BUT WE NEED TO BE 2073 01:27:34,840 --> 01:27:38,240 CONCERNED WITH THE FULL RAY OF 2074 01:27:38,240 --> 01:27:42,800 BEHAVIORAL PREDICTORS. 2075 01:27:42,800 --> 01:27:49,080 SO WHAT ABOUT SPEECH MOTOR 2076 01:27:49,080 --> 01:27:50,040 IMPAIRMENT? 2077 01:27:50,040 --> 01:27:54,040 WE WERE INTERESTED IN THIS 2078 01:27:54,040 --> 01:27:56,200 NEUROLOGICAL DISORDER WHICH 2079 01:27:56,200 --> 01:27:59,600 OCCURS IN PEOPLE WITHOUT AUTISM 2080 01:27:59,600 --> 01:28:06,240 AS WELL WITH APRAXIA IN SPEECH 2081 01:28:06,240 --> 01:28:07,840 GOES TO SPEECH IMPAIRMENT, 2082 01:28:07,840 --> 01:28:09,920 PRECISION AND CONSISTENCY AND 2083 01:28:09,920 --> 01:28:13,200 IT'S ABOUT SPEECH PLANNING 2084 01:28:13,200 --> 01:28:15,600 PRIMARILY AND IT'S 2085 01:28:15,600 --> 01:28:18,120 NEUROLOGICALLY BASED AND WE WERE 2086 01:28:18,120 --> 01:28:22,120 ASKING THE QUESTION, DO 2087 01:28:22,120 --> 01:28:24,560 MINIMALLY VERBAL -- DO SOME 2088 01:28:24,560 --> 01:28:27,280 MINIMALLY VERBAL CHILDREN HAVE 2089 01:28:27,280 --> 01:28:29,440 CO-OCCURRING CHILDHOOD APRAXIA 2090 01:28:29,440 --> 01:28:31,280 OF SPEECH? 2091 01:28:31,280 --> 01:28:35,080 WE KNEW FROM OTHER WORK IN THE 2092 01:28:35,080 --> 01:28:37,080 FIELD THIS IS NOT TRUE FOR SOME 2093 01:28:37,080 --> 01:28:38,600 INDIVIDUALS WITH AUTISM THOUGH 2094 01:28:38,600 --> 01:28:40,760 THEY MAY HAVE OTHER SPEECH 2095 01:28:40,760 --> 01:28:43,640 ISSUES THEY DON'T HAVE THIS MORE 2096 01:28:43,640 --> 01:28:45,080 SEVERE ISSUE OF CHILDHOOD 2097 01:28:45,080 --> 01:28:46,880 APRAXIA OF SPEECH. 2098 01:28:46,880 --> 01:28:50,240 SO WE COLLECTED AND HAD SOME 2099 01:28:50,240 --> 01:28:53,440 STRUCTURED PROTOCOL FOR 2100 01:28:53,440 --> 01:28:55,240 COLLECTING SPEECH PRODUCTION. 2101 01:28:55,240 --> 01:28:57,600 THIS WAS JUST REPEATING WORDS 2102 01:28:57,600 --> 01:29:10,000 AND THEN HAD THEM CODED BY THREE 2103 01:29:10,000 --> 01:29:13,240 EXPERT SPEECH THERAPIST TO CODE 2104 01:29:13,240 --> 01:29:14,920 FOR CIS. 2105 01:29:14,920 --> 01:29:17,560 WHAT WE FOUND WAS THAT THERE 2106 01:29:17,560 --> 01:29:21,760 WERE INDEED HIGH RATES OF CAS. 2107 01:29:21,760 --> 01:29:23,920 WE SAW ON THE LEFT ABOUT A 2108 01:29:23,920 --> 01:29:26,640 QUARTER OF THE SAMPLE DID NOT 2109 01:29:26,640 --> 01:29:29,400 SHOW ANY SPEECH MOTOR 2110 01:29:29,400 --> 01:29:29,680 IMPAIRMENTS. 2111 01:29:29,680 --> 01:29:33,520 A LITTLE MORE THAN A QUARTER HAD 2112 01:29:33,520 --> 01:29:36,640 SOME SPEECH DISORDERS BUT NOT 2113 01:29:36,640 --> 01:29:39,280 SUFFICIENTLY SEVERE TO CALL IT 2114 01:29:39,280 --> 01:29:40,000 CAS. 2115 01:29:40,000 --> 01:29:42,920 ABOUT A QUARTER DID HAVE CAS AND 2116 01:29:42,920 --> 01:29:45,000 ABOUT A QUARTER WERE COMPLETELY 2117 01:29:45,000 --> 01:29:47,120 NON VERBAL AND YOU COULD NOT 2118 01:29:47,120 --> 01:29:48,440 CODE FOR SPEECH MOTOR PROBLEMS 2119 01:29:48,440 --> 01:29:50,280 IF THERE WAS NO SPEECH 2120 01:29:50,280 --> 01:29:59,040 PRODUCTION AT ALL. 2121 01:29:59,040 --> 01:30:03,240 IN FACT WE MIGHT ARGUE ABOUT 75% 2122 01:30:03,240 --> 01:30:05,200 HAVE SOME SPEECH MOTOR DISORDER 2123 01:30:05,200 --> 01:30:08,760 AND I WOULD SAY WE ARE NOW 2124 01:30:08,760 --> 01:30:11,560 CONTINUING TO TRY AND UNRAVEL 2125 01:30:11,560 --> 01:30:15,320 WHAT THIS MEANS IN A NEW COHORT 2126 01:30:15,320 --> 01:30:18,760 OF CHILDREN. 2127 01:30:18,760 --> 01:30:20,520 SO NOW LET ME TURN TO AUDITORY 2128 01:30:20,520 --> 01:30:27,280 PROCESSING. 2129 01:30:27,280 --> 01:30:30,720 YOU SEE EMILY ONE OF OUR MOST 2130 01:30:30,720 --> 01:30:32,880 FANTASTIC PARTICIPANTS THE MOST 2131 01:30:32,880 --> 01:30:34,480 TOLERANT YOUNG WOMEN I MET AND 2132 01:30:34,480 --> 01:30:35,760 YOU SEE HER HERE COVERING HER 2133 01:30:35,760 --> 01:30:38,280 EARS AND THIS IS SOMETHING WE 2134 01:30:38,280 --> 01:30:45,240 SEE A LOT IN PEOPLE WITH AUTISM 2135 01:30:45,240 --> 01:30:46,840 BECAUSE THEY HAVE AUDITORY 2136 01:30:46,840 --> 01:30:47,960 SENSITIVITIES AND SOMETHING WE 2137 01:30:47,960 --> 01:30:50,200 KNOW IS QUITE EXTENSIVE AND 2138 01:30:50,200 --> 01:30:52,200 INTERESTED TO WHAT EXTENT ARE 2139 01:30:52,200 --> 01:30:54,920 THESE AUDITORY SENSORY 2140 01:30:54,920 --> 01:30:56,280 SENSITIVITIES RELATED TO THEIR 2141 01:30:56,280 --> 01:31:02,320 RECEPTIVE LANGUAGE. 2142 01:31:02,320 --> 01:31:04,640 AND WE HAD OBSERVATIONAL CODING, 2143 01:31:04,640 --> 01:31:08,200 WE VIDEO TAPED A GROUP OF 2144 01:31:08,200 --> 01:31:11,080 MINIMALLY AND LOW-VERBAL 2145 01:31:11,080 --> 01:31:12,840 AUTISTIC CHILDREN IN 2146 01:31:12,840 --> 01:31:13,160 ADOLESCENTS. 2147 01:31:13,160 --> 01:31:15,080 THOSE ARE SHOWN IN RED AND WE 2148 01:31:15,080 --> 01:31:19,880 HAD A GROUP WHO WERE AGE AND SEX 2149 01:31:19,880 --> 01:31:20,920 MATCHED VERBAL AUTISTIC CHILDREN 2150 01:31:20,920 --> 01:31:22,600 SHOWN IN BLUE HERE. 2151 01:31:22,600 --> 01:31:26,800 AND DURING ABOUT A 20-MINUTE 2152 01:31:26,800 --> 01:31:29,720 INTERACTION, WE CODED 2153 01:31:29,720 --> 01:31:33,560 OBSERVATIONS OF DIFFERENT 2154 01:31:33,560 --> 01:31:34,240 BEHAVIORS THE INDIVIDUAL WOULD 2155 01:31:34,240 --> 01:31:36,120 EXHIBIT AND LOOKS LIKE THEY HAVE 2156 01:31:36,120 --> 01:31:38,720 SOME SORT OF AUDITORY SENSORY 2157 01:31:38,720 --> 01:31:39,280 ISSUE. 2158 01:31:39,280 --> 01:31:41,280 EITHER SENSORY SEEKING OR 2159 01:31:41,280 --> 01:31:42,400 SENSORY AVOIDANCE FOR FILTERING. 2160 01:31:42,400 --> 01:31:44,680 AND WHAT YOU CAN SEE ON THIS 2161 01:31:44,680 --> 01:31:47,960 GRAPH IS THAT IN TERMS OF VISUAL 2162 01:31:47,960 --> 01:31:50,280 SENSORY SENSITIVITIES, THE TWO 2163 01:31:50,280 --> 01:31:52,760 GROUPS WERE EQUIVALENT. 2164 01:31:52,760 --> 01:31:55,280 HOWEVER, WHEN WE LOOKED AT THEIR 2165 01:31:55,280 --> 01:31:58,080 AUDITORY SENSORY SENSITIVITIES, 2166 01:31:58,080 --> 01:32:02,360 WE SAW FAR MORE IN THE MINIMALLY 2167 01:32:02,360 --> 01:32:07,200 VERBAL GROUP. 2168 01:32:07,200 --> 01:32:08,720 AND HERE YOU SEE THE PERCENTAGE 2169 01:32:08,720 --> 01:32:11,040 WHERE WE'RE SHOWING WHAT'S THE 2170 01:32:11,040 --> 01:32:13,040 RELATIONSHIP BETWEEN THIS AND 2171 01:32:13,040 --> 01:32:16,480 THEIR RECEPTIVE LANGUAGE AND WE 2172 01:32:16,480 --> 01:32:19,320 SEE THE MORE TIME THAT AN 2173 01:32:19,320 --> 01:32:22,760 INDIVIDUAL IN THIS STUDY SPENT 2174 01:32:22,760 --> 01:32:24,440 COVERING THEIR EARS OR SHOWING 2175 01:32:24,440 --> 01:32:26,120 ANY OTHER KIND OF AUDITORY 2176 01:32:26,120 --> 01:32:27,240 PROCESSING PROBLEM, THE LOWER 2177 01:32:27,240 --> 01:32:35,160 THEIR RECEPTIVE LANGUAGE SKILLS. 2178 01:32:35,160 --> 01:32:38,000 FINALLY, WE LOOKED FOR WHETHER 2179 01:32:38,000 --> 01:32:41,480 WE COULD IDENTIFY A GRAY MARKER 2180 01:32:41,480 --> 01:32:44,320 FOR THE AUDITORY PROCESSING 2181 01:32:44,320 --> 01:32:46,400 DIFFICULTIES AND MINIMALLY AND 2182 01:32:46,400 --> 01:32:48,760 LOW VERBAL ADOLESCENT. 2183 01:32:48,760 --> 01:32:51,880 YOU SEE EMILY BEING FITTED WITH 2184 01:32:51,880 --> 01:32:55,960 OUR EEG GAP AND WE USE 2185 01:32:55,960 --> 01:32:58,000 ELECTROPHYSIOLOGY BECAUSE IT'S 2186 01:32:58,000 --> 01:33:00,880 VERY TOLERANT AND WE WERE VERY 2187 01:33:00,880 --> 01:33:03,360 SUCCESSFUL IN GETTING MOST OF 2188 01:33:03,360 --> 01:33:08,360 OUR PARTICIPANTS TO BE ABLE TO 2189 01:33:08,360 --> 01:33:10,240 PROVIDE US WITH GOOD HIGH 2190 01:33:10,240 --> 01:33:11,320 QUALITY DATA USING 2191 01:33:11,320 --> 01:33:14,360 ELECTROPHYSIOLOGY. 2192 01:33:14,360 --> 01:33:17,600 WHAT WE DID WAS WHILE EMILY IS 2193 01:33:17,600 --> 01:33:18,640 SITTING THERE, SHE'S JUST 2194 01:33:18,640 --> 01:33:25,600 HEARING A WHOLE SERIES OF TONES 2195 01:33:25,600 --> 01:33:28,040 AND MOST ARE THE SAME REPEATED 2196 01:33:28,040 --> 01:33:30,400 TONE OVER AND OVER AND 2197 01:33:30,400 --> 01:33:33,760 OCCASIONALLY ABOUT 15% OF THE 2198 01:33:33,760 --> 01:33:35,000 TIME THE TONE WILL BE EITHER 2199 01:33:35,000 --> 01:33:37,200 LOUDER OR SOFTER AND THAT WE CAN 2200 01:33:37,200 --> 01:33:41,560 CALL OUR DEVIANT TERM. 2201 01:33:41,560 --> 01:33:43,240 WHEN YOU'RE LISTENING TO A 2202 01:33:43,240 --> 01:33:44,960 STREAM OF SOUNDS LIKE THAT THE 2203 01:33:44,960 --> 01:33:46,600 BRAIN RESPONDS DIFFERENTLY TO 2204 01:33:46,600 --> 01:33:47,640 THE SO-CALLED DEVIANT SOUND AND 2205 01:33:47,640 --> 01:33:53,360 YOU SEE THAT HERE IN THE 2206 01:33:53,360 --> 01:33:57,000 TOPOGRAPH THE HIGHER AMPLITUDE 2207 01:33:57,000 --> 01:34:03,360 AND THE RESPONSE TO THE DEVIANT 2208 01:34:03,360 --> 01:34:10,600 SOUND WE FOUND THE RESPONSE TO 2209 01:34:10,600 --> 01:34:12,760 THE DEVIANT SOUND WAS RELATE TO 2210 01:34:12,760 --> 01:34:17,920 THE AMOUNT OF TIME THEY SPENT 2211 01:34:17,920 --> 01:34:23,280 EXHIBITING THOSE AUDITORY 2212 01:34:23,280 --> 01:34:28,520 SENSORY SENSITIVITIES. 2213 01:34:28,520 --> 01:34:35,600 THE AMPLITUDE WAS SMALLER. 2214 01:34:35,600 --> 01:34:37,600 THE BRAIN IS NOT RESPONDING AS 2215 01:34:37,600 --> 01:34:38,760 MUCH TO THE DIFFERENCE IN TONES 2216 01:34:38,760 --> 01:34:41,640 TO THOSE WITH MORE AUDITORY 2217 01:34:41,640 --> 01:34:43,000 SENSORY BEHAVIORS. 2218 01:34:43,000 --> 01:34:47,760 THERE'S CLEARLY SOMETHING 2219 01:34:47,760 --> 01:34:56,080 DIFFERENT IN THE BRAIN THIS IS 2220 01:34:56,080 --> 01:34:57,960 AN AREA WE'RE CONTINUING TO 2221 01:34:57,960 --> 01:34:59,400 EXPLORE IN OUR NEW CLINIC 2222 01:34:59,400 --> 01:35:11,720 RESEARCH CENTER GRANT. 2223 01:35:11,720 --> 01:35:13,200 SOME DON'T ACQUIRE LANGUAGE AND 2224 01:35:13,200 --> 01:35:15,080 WE HAVE METHODS FOR EXPRESSIVE 2225 01:35:15,080 --> 01:35:17,880 LANGUAGE BUT NEED TO TAILOR THEM 2226 01:35:17,880 --> 01:35:18,640 TO EACH PERSON. 2227 01:35:18,640 --> 01:35:24,240 WE HAVE MANY EXPLANATIONS AND 2228 01:35:24,240 --> 01:35:27,400 THE KEY TAKEAWAY IS THAT THERE'S 2229 01:35:27,400 --> 01:35:28,920 SIGNIFICANT INDIVIDUAL VARIATION 2230 01:35:28,920 --> 01:35:31,800 NOT ONLY IN THE METH ADDS FOR 2231 01:35:31,800 --> 01:35:37,760 BUT ALSO IN WHAT EXPLAINS THE 2232 01:35:37,760 --> 01:35:40,200 DIFFICULTIES IN ACQUIRED SPOKEN 2233 01:35:40,200 --> 01:35:47,320 LANGUAGE ACROSS THIS GROUP OF 2234 01:35:47,320 --> 01:35:49,480 INDIVIDUALS. 2235 01:35:49,480 --> 01:35:51,320 IT'S THE INDIVIDUAL VARIATION 2236 01:35:51,320 --> 01:35:59,680 THAT CAN INFORM INTERVENTION. 2237 01:35:59,680 --> 01:36:01,200 I WANT TO THANK MY COLLABORATORS 2238 01:36:01,200 --> 01:36:05,120 AND THANK THE FUNDERS OF THE 2239 01:36:05,120 --> 01:36:06,720 RESEARCH I PRESENTED TODAY AND 2240 01:36:06,720 --> 01:36:11,280 MOST ESPECIALLY TO ALL THE 2241 01:36:11,280 --> 01:36:13,520 FAMILIES AND CHILDREN AND 2242 01:36:13,520 --> 01:36:14,480 TEENAGERS WHO'VE GIVEN US SO 2243 01:36:14,480 --> 01:36:17,640 MUCH TIME AND SUPPORT AND 2244 01:36:17,640 --> 01:36:18,600 INSIGHT AND FROM WHOM WE'VE 2245 01:36:18,600 --> 01:36:19,280 LEARNED SO MUCH. 2246 01:36:19,280 --> 01:36:28,600 THANK YOU. 2247 01:36:28,600 --> 01:36:32,520 >> THANK YOU, HELEN FOR THAT 2248 01:36:32,520 --> 01:36:33,040 REALLY EXCELLENT TALK. 2249 01:36:33,040 --> 01:36:44,240 WE'LL NOW MOVE ON THEN TO OUR 2250 01:36:44,240 --> 01:36:47,760 SECOND SPEAKER, DR. KASARI WHO 2251 01:36:47,760 --> 01:36:51,160 WILL CONTINUE ON RESEARCH ON 2252 01:36:51,160 --> 01:36:51,600 MINIMALLY VERBAL ASD. 2253 01:36:51,600 --> 01:37:05,840 >> THANK YOU SO MUCH. 2254 01:37:05,840 --> 01:37:08,720 THANK YOU FOR HAVING ME FROM THE 2255 01:37:08,720 --> 01:37:11,600 WEST COAST, IT'S STILL MORNING 2256 01:37:11,600 --> 01:37:12,000 HERE. 2257 01:37:12,000 --> 01:37:17,200 I'M GOING TO TALK ABOUT 2258 01:37:17,200 --> 01:37:19,600 INTERVENTIONS FOR YOUNG 2259 01:37:19,600 --> 01:37:21,280 MINIMALLY VERBAL SCHOOL AGE 2260 01:37:21,280 --> 01:37:23,280 CHILDREN WITH AUTISM. 2261 01:37:23,280 --> 01:37:25,960 INTERVENTIONS FOR MINIMALLY 2262 01:37:25,960 --> 01:37:29,400 VERBAL INDIVIDUALS IS THEY'RE 2263 01:37:29,400 --> 01:37:31,760 INCREASING BUT WE HAVEN'T HAD 2264 01:37:31,760 --> 01:37:33,920 MANY OF THOSE PUBLISHED. 2265 01:37:33,920 --> 01:37:35,600 SO WE WERE INFLUENCED BY A 2266 01:37:35,600 --> 01:37:38,000 NUMBER OF REVIEWS A COUPLE THAT 2267 01:37:38,000 --> 01:37:40,280 JUDITH ALREADY MENTIONED. 2268 01:37:40,280 --> 01:37:41,400 WE KNOW MINIMALLY VERBAL 2269 01:37:41,400 --> 01:37:45,360 CHILDREN ARE OFTEN EXCLUDED FROM 2270 01:37:45,360 --> 01:37:46,760 INTERVENTION STUDIES EVEN AT 2271 01:37:46,760 --> 01:37:48,400 YOUNG AGES. 2272 01:37:48,400 --> 01:37:51,240 AND IN OUR ASSESSMENTS ARE 2273 01:37:51,240 --> 01:37:53,560 POORLY DESIGNED TO ACCURATELY 2274 01:37:53,560 --> 01:37:54,120 DETERMINED NEEDS. 2275 01:37:54,120 --> 01:37:56,080 PEOPLE ARE RELYING ON 2276 01:37:56,080 --> 01:37:57,360 STANDARDIZED ASSESSMENT AS WE 2277 01:37:57,360 --> 01:37:59,240 HEARD FROM BUT MEASURE I THINK 2278 01:37:59,240 --> 01:38:02,320 ARE EXCITING AND ESPECIALLY 2279 01:38:02,320 --> 01:38:03,840 LANGUAGE SAMPLES IN REAL-WORLD 2280 01:38:03,840 --> 01:38:07,320 SITUATIONS BECAUSE THERE'S MORE 2281 01:38:07,320 --> 01:38:08,960 LIKELY TO YIELD INFORMATION. 2282 01:38:08,960 --> 01:38:12,800 WE WERE ALSO INFLUENCED BY A 2283 01:38:12,800 --> 01:38:19,280 REVIEW OF INTERVENTIONS FROM 2284 01:38:19,280 --> 01:38:21,400 MINIMALLY VERBAL AND THE 2285 01:38:21,400 --> 01:38:22,680 OPPORTUNITY APPEARED TO BE 2286 01:38:22,680 --> 01:38:27,280 GREATEST IN THIS YOUNG SCHOOL 2287 01:38:27,280 --> 01:38:29,040 AGED YEARS, FIVE TO SEVEN YEARS 2288 01:38:29,040 --> 01:38:30,600 OF AGE. 2289 01:38:30,600 --> 01:38:32,360 THE INTERVENTIONS THEMSELVES 2290 01:38:32,360 --> 01:38:37,920 FOCUSSED MORE ON REQUESTING 2291 01:38:37,920 --> 01:38:43,280 LANGUAGE SO GETTING CHILDREN'S 2292 01:38:43,280 --> 01:38:47,240 NEEDS MET AND LESS ON JOINT 2293 01:38:47,240 --> 01:38:48,320 ATTENTION LANGUAGE. 2294 01:38:48,320 --> 01:38:49,840 THE WORKSHOP JUDITH MENTIONS WAS 2295 01:38:49,840 --> 01:38:55,240 INFLUENTIAL IN THAT WHAT WE 2296 01:38:55,240 --> 01:38:59,720 LEARNED WAS MOST NON-VERBAL NON 2297 01:38:59,720 --> 01:39:02,000 VERBAL WERE MINIMALLY VERBAL AND 2298 01:39:02,000 --> 01:39:10,400 DEFINED BY WORDS SPOKEN. 2299 01:39:10,400 --> 01:39:13,200 WE LOOKED AT THOSE WHO WITH 2300 01:39:13,200 --> 01:39:15,640 FEWER 20 FUNCTIONALLY WORDS WERE 2301 01:39:15,640 --> 01:39:18,720 CLASSIFIED AS MINIMALLY VERBAL. 2302 01:39:18,720 --> 01:39:19,880 YOUNG CHILDREN UNDER 5 WE 2303 01:39:19,880 --> 01:39:23,280 DETERMINED TO BE PRE VERBAL AND 2304 01:39:23,280 --> 01:39:32,120 WOULD TALK BUT THEY WERE JUST 2305 01:39:32,120 --> 01:39:33,560 STILL LEARNING TO TALK THANE 2306 01:39:33,560 --> 01:39:35,280 GROUP THERE'S STILL THE 2307 01:39:35,280 --> 01:39:39,840 POTENTIAL FOR SPOKEN LANGUAGE IT 2308 01:39:39,840 --> 01:39:40,400 DOESN'T MEAN PEOPLE DON'T 2309 01:39:40,400 --> 01:39:43,280 CONTINUE TO LEARN TO SPEAK AND 2310 01:39:43,280 --> 01:39:47,920 THERE'S REPORTS OF ADULTS 2311 01:39:47,920 --> 01:39:49,800 SPEAKING THEIR FIRST WORDS AS 2312 01:39:49,800 --> 01:39:52,240 ADULT SO ONE SHOULD NEVER NOT 2313 01:39:52,240 --> 01:39:53,880 HAVE FACILITATION OR 2314 01:39:53,880 --> 01:39:54,400 INTERVENTION FOR SPEAKING. 2315 01:39:54,400 --> 01:39:56,280 THE OTHER THING WE LEARNED WAS 2316 01:39:56,280 --> 01:39:59,200 THAT SOME CHILDREN CAN SPEAK BUT 2317 01:39:59,200 --> 01:40:04,840 THEY RARELY DO OR ONLY IN SOME 2318 01:40:04,840 --> 01:40:07,000 CONTEXT OR THEY SPEAK WITH MORE 2319 01:40:07,000 --> 01:40:08,960 SCRIPTED PHRASES SO FAMILIAR 2320 01:40:08,960 --> 01:40:14,840 PHRASES SO THEY MAY USE AFRAID 2321 01:40:14,840 --> 01:40:16,400 THAT ISN'T CONNECTED TO A 2322 01:40:16,400 --> 01:40:18,120 CONTEXT BUT USED TO COMMUNICATE 2323 01:40:18,120 --> 01:40:20,000 WITH THE CONTEXT AND THEN FOR 2324 01:40:20,000 --> 01:40:21,400 INTERVENTIONS, WHAT DO WE DO? 2325 01:40:21,400 --> 01:40:27,000 SO INTERVENTION IS OFTEN TO DO 2326 01:40:27,000 --> 01:40:29,360 JUST MORE OF THE SAME TO 2327 01:40:29,360 --> 01:40:30,920 INCREASE THE NUMBER OF SPEECH 2328 01:40:30,920 --> 01:40:32,960 AND LANGUAGE SESSION OR WORSE WE 2329 01:40:32,960 --> 01:40:34,200 TAKE TAKEAWAY INTERVENTIONS AND 2330 01:40:34,200 --> 01:40:35,280 BLAME THE CHILD FOR THEIR LACK 2331 01:40:35,280 --> 01:40:42,080 OF PROGRESS. 2332 01:40:42,080 --> 01:40:43,280 THESE SITUATIONS STILL 2333 01:40:43,280 --> 01:40:43,560 CONDITION. 2334 01:40:43,560 --> 01:40:46,880 THERE'S A LOT OF IMPORTANT 2335 01:40:46,880 --> 01:40:47,720 CONSIDERATIONS AROUND 2336 01:40:47,720 --> 01:40:48,640 INTERVENTIONS. 2337 01:40:48,640 --> 01:40:50,320 WHAT APPROACH SHOULD WE USE FOR 2338 01:40:50,320 --> 01:40:56,920 FACILITATING LANGUAGE? 2339 01:40:56,920 --> 01:40:59,240 ESPECIALLY SINCE EARLY 2340 01:40:59,240 --> 01:41:01,600 INTERVENTIONS ARE HAVING SUCCESS 2341 01:41:01,600 --> 01:41:03,800 WITH A THIRD NOT HAVING SPOKEN 2342 01:41:03,800 --> 01:41:06,920 FLUENT LANGUAGE BY THE TIME THEY 2343 01:41:06,920 --> 01:41:07,520 ENTER KINDERGARTEN. 2344 01:41:07,520 --> 01:41:10,600 HOW LONG SHOULD WE TRY THE 2345 01:41:10,600 --> 01:41:12,160 INTERVENTION BEFORE WE CHANGE 2346 01:41:12,160 --> 01:41:13,160 SOMETHING AND IF WE CHANGE 2347 01:41:13,160 --> 01:41:14,560 SOMETHING WHAT METRIC DO WE USE 2348 01:41:14,560 --> 01:41:16,720 TO DETERMINE THE RESPONSE TO THE 2349 01:41:16,720 --> 01:41:17,040 INTERVENTION? 2350 01:41:17,040 --> 01:41:22,080 WHAT DOSE IS NECESSARY AND 2351 01:41:22,080 --> 01:41:25,080 WHAT'S A MEANINGFUL AND 2352 01:41:25,080 --> 01:41:26,320 REALISTIC OUTCOME. 2353 01:41:26,320 --> 01:41:28,360 OUR GOAL IS TO PERSONALIZE 2354 01:41:28,360 --> 01:41:30,640 INTERVENTIONS WITH A MEANINGFUL 2355 01:41:30,640 --> 01:41:30,880 OUTCOME. 2356 01:41:30,880 --> 01:41:32,320 WITH THAT RECOGNITION THAT A 2357 01:41:32,320 --> 01:41:34,240 SINGLE INTERVENTION IS JUST NOT 2358 01:41:34,240 --> 01:41:39,600 GOING TO BE EFFECTIVE FOR ALL 2359 01:41:39,600 --> 01:41:43,800 INDIVIDUAL 2360 01:41:43,800 --> 01:41:44,120 INDIVIDUALS. 2361 01:41:44,120 --> 01:41:46,600 SO WE HAVE BEEN FOCUSSED ON 2362 01:41:46,600 --> 01:41:47,240 ADAPTIVE INTERVENTION DESIGNS. 2363 01:41:47,240 --> 01:41:52,240 DESIGNS THAT CAME OUT OF CANCER 2364 01:41:52,240 --> 01:41:56,800 RESEARCH OR SUBSTANCE ABUSE 2365 01:41:56,800 --> 01:41:59,000 RESEARCH AND APPLIED IT FOR THE 2366 01:41:59,000 --> 01:42:03,000 FIRST TIME TO AUTISM RESEARCH. 2367 01:42:03,000 --> 01:42:15,360 IT'S A WAY OF SYSTEMATIZE 2368 01:42:15,360 --> 01:42:18,320 PRACTICE AND THE THERAPIST 2369 01:42:18,320 --> 01:42:22,000 DESCRIBED AS MAGICAL IS THE 2370 01:42:22,000 --> 01:42:22,920 THERAPIST EVERY PARENTS WANTS 2371 01:42:22,920 --> 01:42:26,320 THEM TO SEE BUT THEY DON'T HAVE 2372 01:42:26,320 --> 01:42:29,400 THE BANDWIDTH HE OR SHE COULD 2373 01:42:29,400 --> 01:42:31,320 SEE AND THAT PERSON PROBABLY HAS 2374 01:42:31,320 --> 01:42:34,480 A LOT OF TOOLS IN THEIR TOOLBOX 2375 01:42:34,480 --> 01:42:37,840 AND A LOT OF GOOD CLINICAL 2376 01:42:37,840 --> 01:42:41,800 JUDGMENT BUT TRYING TO REM KALT 2377 01:42:41,800 --> 01:42:42,440 THAT ACROSS ALL THE CHILDREN 2378 01:42:42,440 --> 01:42:44,560 THEY SEE OR WHEN THEY TRY TO 2379 01:42:44,560 --> 01:42:50,000 TRAIN OTHER PRACTITIONERS IS 2380 01:42:50,000 --> 01:42:53,200 REALLY DIFFICULT. 2381 01:42:53,200 --> 01:43:06,400 SO THIS CAN SYSTEMATIZE THE 2382 01:43:06,400 --> 01:43:07,360 INTERVENTION WHETHER THE DOSE, 2383 01:43:07,360 --> 01:43:14,360 TYPE OR DELIVERY OF TREATMENT AT 2384 01:43:14,360 --> 01:43:18,520 ADDITION -- A DECISION STAGE AT 2385 01:43:18,520 --> 01:43:21,560 THE COURSE OF INTERVENTION. 2386 01:43:21,560 --> 01:43:33,280 WE APPLIED THIS MODEL AND 2387 01:43:33,280 --> 01:43:37,000 THERE'S THE CONTROVERSY USING AN 2388 01:43:37,000 --> 01:43:38,320 AUGMENTATIVE DEVICE MAY CHANGE 2389 01:43:38,320 --> 01:43:38,800 SPOKEN LANGUAGE. 2390 01:43:38,800 --> 01:43:41,040 IT'S A COMMON ISSUE. 2391 01:43:41,040 --> 01:43:44,280 I STILL HEAR THE ISSUE PARENTS 2392 01:43:44,280 --> 01:43:45,240 SOMETIMES DON'T WANT THEIR YOUNG 2393 01:43:45,240 --> 01:43:47,680 CHILDREN TO USE A DEVICE BECAUSE 2394 01:43:47,680 --> 01:43:49,120 THEY THINK IT WILL DELAY OR 2395 01:43:49,120 --> 01:43:51,240 PREVENT SPOKEN LANGUAGE. 2396 01:43:51,240 --> 01:43:55,960 IN FACT THERE ARE THERAPISTS 2397 01:43:55,960 --> 01:43:56,560 THAT ALSO HAVE THE SAME VIEW 2398 01:43:56,560 --> 01:43:58,400 POINT. 2399 01:43:58,400 --> 01:44:01,840 SO WE DID AN INTERVENTION WITH 2400 01:44:01,840 --> 01:44:04,080 MINIMALLY VERBAL CHILDREN WITH 2401 01:44:04,080 --> 01:44:05,720 AUTISM, THERE WERE 61 CHILDREN 2402 01:44:05,720 --> 01:44:08,040 AGES 5 TO 8. 2403 01:44:08,040 --> 01:44:09,760 THEY HAD FEWER THAN 20 2404 01:44:09,760 --> 01:44:12,800 FUNCTIONAL WORDS BASED ON OUR 2405 01:44:12,800 --> 01:44:13,200 ASSESSMENTS. 2406 01:44:13,200 --> 01:44:15,360 THEY ALREADY RECEIVED TWO YEARS 2407 01:44:15,360 --> 01:44:17,440 OF INTENSIVE EARLY INTERVENTION. 2408 01:44:17,440 --> 01:44:19,200 SO WE DIDN'T WANT TO HAVE 2409 01:44:19,200 --> 01:44:21,400 CHILDREN THAT HAD NEVER BEEN 2410 01:44:21,400 --> 01:44:23,920 EXPOSED TO INTERVENTION BUT 2411 01:44:23,920 --> 01:44:26,280 ACTUALLY ALREADY HAD SHOWN THEY 2412 01:44:26,280 --> 01:44:27,320 WERE HAVING SLOW PROGRESS 2413 01:44:27,320 --> 01:44:30,200 TOWARDS SPOKEN LANGUAGE. 2414 01:44:30,200 --> 01:44:32,040 AND ONE OF THE THINGS THAT 2415 01:44:32,040 --> 01:44:34,120 HAPPENS IN INTERVENTION RESEARCH 2416 01:44:34,120 --> 01:44:38,160 IS THAT RANDOMIZED CONTROL 2417 01:44:38,160 --> 01:44:40,960 TRIALS ARE DONE WITH AN 2418 01:44:40,960 --> 01:44:41,520 EXPERIMENTAL INTERVENTION 2419 01:44:41,520 --> 01:44:42,960 COMPARED TO TREATMENT AS USUAL. 2420 01:44:42,960 --> 01:44:45,680 AND IN THIS CASE THE CHILDREN'S 2421 01:44:45,680 --> 01:44:47,360 TREATMENT USUAL HADN'T BEEN VERY 2422 01:44:47,360 --> 01:44:47,800 SUCCESSFUL. 2423 01:44:47,800 --> 01:44:50,080 SO WE WANTED TO PROVIDE ALL 2424 01:44:50,080 --> 01:44:52,320 CHILDREN WITH SOMETHING NOVEL. 2425 01:44:52,320 --> 01:44:54,600 SOMETHING THEY PROBABLY HADN'T 2426 01:44:54,600 --> 01:44:55,600 BEEN EXPOSED TO. 2427 01:44:55,600 --> 01:44:58,680 SO ALL THE CHILDREN GOT ONE OF 2428 01:44:58,680 --> 01:45:00,280 THESE NATURALISTIC DEVELOPMENTAL 2429 01:45:00,280 --> 01:45:01,120 BEHAVIORAL INTERVENTIONS, IN 2430 01:45:01,120 --> 01:45:02,960 THIS CASE, JASPER, AND WE 2431 01:45:02,960 --> 01:45:06,680 BLENDED IT WITH A SPOKEN 2432 01:45:06,680 --> 01:45:07,360 LANGUAGE INTERVENTION REFERRED 2433 01:45:07,360 --> 01:45:15,000 TO AS ENHANCED MILIEU TEACHING 2434 01:45:15,000 --> 01:45:16,600 OUT OF VANDERBILT FROM ANN 2435 01:45:16,600 --> 01:45:16,840 KAISER. 2436 01:45:16,840 --> 01:45:19,200 ALL THE CHILDREN GOT THE SAME 2437 01:45:19,200 --> 01:45:23,840 TREATMENT AND CAN THE DEVICE 2438 01:45:23,840 --> 01:45:29,680 FACILITATE MORE SPOKEN LANGUAGE. 2439 01:45:29,680 --> 01:45:30,200 HALF THE CHILDREN WERE 2440 01:45:30,200 --> 01:45:30,800 RANDOMIZED TO RECEIVE THE DEVICE 2441 01:45:30,800 --> 01:45:31,600 IN THE CONTEXT OF THAT 2442 01:45:31,600 --> 01:45:32,320 INTERVENTION. 2443 01:45:32,320 --> 01:45:35,800 THE SAMPLE WAS PRIMARILY MALE. 2444 01:45:35,800 --> 01:45:38,320 ABOUT HALF THE CHILDREN WERE 2445 01:45:38,320 --> 01:45:39,960 ETHNIC RACIAL MINORITIES. 2446 01:45:39,960 --> 01:45:42,520 THE AVERAGE AGE WAS 6 AND THE 2447 01:45:42,520 --> 01:45:44,320 NUMBER OF FUNCTIONAL WORDS ON A 2448 01:45:44,320 --> 01:45:46,560 NUMBER OF DIFFERENT ASSESSMENTS 2449 01:45:46,560 --> 01:45:51,200 ALL TOGETHER WAS ABOUT 17 WORDS 2450 01:45:51,200 --> 01:45:54,640 AND THE NON-VERBAL SCORES I.Q. 2451 01:45:54,640 --> 01:45:59,280 SCORES RANGE FROM 38 TO 140. 2452 01:45:59,280 --> 01:46:01,040 SO INCREDIBLE HETEROGENEITY EVEN 2453 01:46:01,040 --> 01:46:06,720 AMONGST THE COHORT OF CHILDREN. 2454 01:46:06,720 --> 01:46:09,000 AND THE TWO INTERVENTIONS WERE 2455 01:46:09,000 --> 01:46:11,240 JASPER WHICH PRIORITIZES 2456 01:46:11,240 --> 01:46:12,000 ENGAGEMENT AND SOCIAL 2457 01:46:12,000 --> 01:46:13,200 COMMUNICATION TO TEACH LANGUAGE 2458 01:46:13,200 --> 01:46:16,040 AND YOU'LL SEE THE CORE DOMAINS 2459 01:46:16,040 --> 01:46:18,120 THERE AND ENHANCE MILIEU 2460 01:46:18,120 --> 01:46:19,880 TEACHING WHICH STRUCTURES 2461 01:46:19,880 --> 01:46:22,440 LANGUAGE PROMPTING PROCEDURES. 2462 01:46:22,440 --> 01:46:24,680 THEY USED TIME DELAY STRATEGIES 2463 01:46:24,680 --> 01:46:26,280 AND A PROMPTING PROCEDURE THAT'S 2464 01:46:26,280 --> 01:46:31,240 REALLY FOCUSSED AT THE CHILD'S 2465 01:46:31,240 --> 01:46:33,920 COMMUNICATION LEVEL. 2466 01:46:33,920 --> 01:46:35,720 SO HERE'S THE DESIGN WHICH IS 2467 01:46:35,720 --> 01:46:37,480 ACTUALLY VERY SIMPLE ONE THOUGH 2468 01:46:37,480 --> 01:46:41,200 IT LOOKS KIND OF BUSY. 2469 01:46:41,200 --> 01:46:42,800 SO THE BEHAVIORAL INTERVENTION 2470 01:46:42,800 --> 01:46:45,720 IS CALLED JASPER FOR SHORT. 2471 01:46:45,720 --> 01:46:48,160 SO CHILDREN WERE RANDOMIZED AND 2472 01:46:48,160 --> 01:46:50,520 IN THIS CASE IT'S A SMART DESIGN 2473 01:46:50,520 --> 01:46:53,200 SO THAT'S A SEQUENTIAL MULTIPLE 2474 01:46:53,200 --> 01:46:54,120 ASSIGNMENT RANDOMIZED TRIAL 2475 01:46:54,120 --> 01:46:55,280 WHICH MEANS THERE'S MORE THAN 2476 01:46:55,280 --> 01:46:57,600 ONE RANDOMIZATION. 2477 01:46:57,600 --> 01:46:59,400 CHILDREN WERE RANDOMIZED TO 2478 01:46:59,400 --> 01:47:01,200 RECEIVE JUS THE BLENDED 2479 01:47:01,200 --> 01:47:05,160 INTERVENTION OR THE BLENDED 2480 01:47:05,160 --> 01:47:06,600 INTERVENTION WITH AN 2481 01:47:06,600 --> 01:47:07,320 AUGMENTATIVE DEVICE. 2482 01:47:07,320 --> 01:47:09,800 THE FIRST STAGE TREATMENT WAS 2483 01:47:09,800 --> 01:47:11,280 FOR 12 WEEKS. 2484 01:47:11,280 --> 01:47:14,240 TWO SESSIONS A WEEK SO ABOUT TWO 2485 01:47:14,240 --> 01:47:17,640 HOURS OF INTERVENTION WITH A 2486 01:47:17,640 --> 01:47:18,080 THERAPIST PER WEEK. 2487 01:47:18,080 --> 01:47:22,600 AND AT THE END OF THAT 12-WEEK 2488 01:47:22,600 --> 01:47:24,000 PERIOD WE DETERMINED WHETHER THE 2489 01:47:24,000 --> 01:47:26,840 CHILD WAS A FAST OR SLOW 2490 01:47:26,840 --> 01:47:28,960 RESPONDER AND RESPONSE WAS 2491 01:47:28,960 --> 01:47:31,280 DETERMINED TO BE 25% IMPROVEMENT 2492 01:47:31,280 --> 01:47:35,200 ON THE PRIMARY OUTCOME WHICH 2493 01:47:35,200 --> 01:47:40,600 I'LL DESCRIBE AS A SOCIALLY 2494 01:47:40,600 --> 01:47:42,240 COMMUNITYIVE UTTERANCES THAT ARE 2495 01:47:42,240 --> 01:47:45,400 SOCIALLY RELATED. 2496 01:47:45,400 --> 01:47:47,240 COMMUNICATIVE UTTERANCES THAT 2497 01:47:47,240 --> 01:47:49,400 ARE SOCIALLY RELATED. 2498 01:47:49,400 --> 01:47:51,720 AND IF THEY WERE RESPONDERS THEY 2499 01:47:51,720 --> 01:47:52,720 COULD STAY THE SAME COURSE. 2500 01:47:52,720 --> 01:47:56,240 IF THEY WERE SLOW RESPONDERS AND 2501 01:47:56,240 --> 01:47:59,720 HAD THE AUGMENTATIVE DEVICE THEY 2502 01:47:59,720 --> 01:48:01,400 CAN GET ANOTHER SESSION A WEEK 2503 01:48:01,400 --> 01:48:03,840 AND IF THEY HAVEN'T HAVE THE 2504 01:48:03,840 --> 01:48:06,200 DEVICE THEY CAN BE RANDOMIZED 2505 01:48:06,200 --> 01:48:07,760 FOR THE DEVICE OR AN INCREASED 2506 01:48:07,760 --> 01:48:08,000 SESSION. 2507 01:48:08,000 --> 01:48:11,280 DURING THE SECOND PHASE WE ALSO 2508 01:48:11,280 --> 01:48:11,720 DID PARENT TRAINING 2509 01:48:11,720 --> 01:48:12,840 SPECIFICALLY. 2510 01:48:12,840 --> 01:48:17,640 SO YOU WILL SEE THERE ARE SOME 2511 01:48:17,640 --> 01:48:19,400 EMBEDDED INTERVENTIONS IN THE 2512 01:48:19,400 --> 01:48:31,280 SECOND STAGE TREATMENT. 2513 01:48:31,280 --> 01:48:33,800 A 20-MINUTE INTERACTION BETWEEN 2514 01:48:33,800 --> 01:48:35,600 THE ADULT AND THE CHILD AND 2515 01:48:35,600 --> 01:48:38,040 SYSTEMATIC AND THE LANGUAGE 2516 01:48:38,040 --> 01:48:39,560 SAMPLES WERE TRANSCRIBED USING 2517 01:48:39,560 --> 01:48:42,280 SALT AND WE HAD INDEPENDENT 2518 01:48:42,280 --> 01:48:49,880 CODERS WHO NOTED EACH UTTERANCE, 2519 01:48:49,880 --> 01:48:51,200 NON-SCRIPTIVE AND COMMUNICATIVE 2520 01:48:51,200 --> 01:48:53,200 FUNCTION AND A COMMENT OR 2521 01:48:53,200 --> 01:48:55,880 REQUEST AND BOTH SPOKEN AND 2522 01:48:55,880 --> 01:48:58,600 SPEECH-GENERATED PRODUCES 2523 01:48:58,600 --> 01:49:00,320 UTTERANCES WERE TRANSCRIBED. 2524 01:49:00,320 --> 01:49:04,760 THE PRIMARY OUTCOME IS A TOTAL 2525 01:49:04,760 --> 01:49:06,320 SPONTANEOUS COMMUNICATIVE 2526 01:49:06,320 --> 01:49:06,840 UTTERANCE. 2527 01:49:06,840 --> 01:49:09,200 SO WHAT DID WE FIND? 2528 01:49:09,200 --> 01:49:11,800 THE BLACK LINE ON THE TOP IS THE 2529 01:49:11,800 --> 01:49:13,840 GROUP THAT GOT THE AUGMENTATIVE 2530 01:49:13,840 --> 01:49:15,320 DEVICE AND THE RED LINE ARE THE 2531 01:49:15,320 --> 01:49:17,400 KIDS WHO HAD THE INTERVENTION 2532 01:49:17,400 --> 01:49:19,120 WITHOUT THE DEVICE. 2533 01:49:19,120 --> 01:49:21,800 AND WHAT'S INTERESTING IS THAT 2534 01:49:21,800 --> 01:49:26,240 THERE IS A HUGE INCREASE EVEN IN 2535 01:49:26,240 --> 01:49:29,880 THE FIRST 12 WEEKS OF SPOKEN -- 2536 01:49:29,880 --> 01:49:34,000 THESE SPOKEN UTTERANCES. 2537 01:49:34,000 --> 01:49:37,400 SO HAVING A DEVICE MATTERED FOR 2538 01:49:37,400 --> 01:49:38,720 INCREASING SPOKEN LANGUAGE. 2539 01:49:38,720 --> 01:49:40,920 THE GROUP WITHOUT THE DEVICE WAS 2540 01:49:40,920 --> 01:49:42,320 MAKING SLOW AND STEADY PROGRESS 2541 01:49:42,320 --> 01:49:44,280 BUT NOT NEARLY AS FAST AS HAVING 2542 01:49:44,280 --> 01:49:47,520 THE DEVICE. 2543 01:49:47,520 --> 01:49:50,160 WE ALSO FOUND SIMILAR FINDINGS 2544 01:49:50,160 --> 01:49:52,400 FOR NOVEL WORDS AND COMMENTS. 2545 01:49:52,400 --> 01:49:55,240 IF YOU HAVE THE DEVICE YOU ALSO 2546 01:49:55,240 --> 01:49:57,200 PRODUCE MORE NOVEL WORDS AND 2547 01:49:57,200 --> 01:49:57,760 MORE COMMENTING OR JOINT 2548 01:49:57,760 --> 01:50:06,960 ATTENTION LANGUAGE. 2549 01:50:06,960 --> 01:50:09,280 SO THAT ANALYSIS WAS THE WHOLE 2550 01:50:09,280 --> 01:50:09,560 SEQUENCE. 2551 01:50:09,560 --> 01:50:11,320 SO STARTING WITH THE TOP HALF 2552 01:50:11,320 --> 01:50:12,680 AND THE BOTTOM HALF. 2553 01:50:12,680 --> 01:50:14,320 BUT WE CAN ALSO LOOK AT THE 2554 01:50:14,320 --> 01:50:18,600 EMBEDDED INTERVENTIONS. 2555 01:50:18,600 --> 01:50:28,480 SO WHAT HAPPENS WHEN WE TEASE 2556 01:50:28,480 --> 01:50:29,640 APART THE SECOND STAGE 2557 01:50:29,640 --> 01:50:29,920 TREATMENT. 2558 01:50:29,920 --> 01:50:31,280 ON THE LEFT IS THE OUTCOME OF 2559 01:50:31,280 --> 01:50:34,720 THE PRIMARY OUTCOME THE TOTAL 2560 01:50:34,720 --> 01:50:36,520 SOCIAL COMMUNICATIVE UTTERANCES 2561 01:50:36,520 --> 01:50:38,000 AND ON THE RIGHT SIDE IS A 2562 01:50:38,000 --> 01:50:40,120 DIFFERENT OUTCOME, THE CHILD 2563 01:50:40,120 --> 01:50:41,400 INITIATING JOINT ATTENTION. 2564 01:50:41,400 --> 01:50:43,640 AND YOU CAN SEE HERE THAT THE 2565 01:50:43,640 --> 01:50:45,240 BLACK LINE AT THE TOP ARE KIDS 2566 01:50:45,240 --> 01:50:47,400 WHO GOT THE SPEECH GENERATING 2567 01:50:47,400 --> 01:50:50,280 DEVICE AND THEN STAYED WITH THE 2568 01:50:50,280 --> 01:50:51,640 SPEECH GENERATING DEVICE. 2569 01:50:51,640 --> 01:50:53,000 THE RED LINE IN THE MIDDLE ARE 2570 01:50:53,000 --> 01:50:59,360 KIDS WHO STARTED WITH NO SPEECH 2571 01:50:59,360 --> 01:51:01,600 GENERATING DEVICE BUT THEN GOT 2572 01:51:01,600 --> 01:51:03,320 RANDOMIZED FOR THE 2573 01:51:03,320 --> 01:51:04,880 SPEECH-GENERATING DEVICE AND THE 2574 01:51:04,880 --> 01:51:06,720 BLUE LINE ARE THE KIDS WHO NEVER 2575 01:51:06,720 --> 01:51:08,240 HAD THE SPEECH GENERATING 2576 01:51:08,240 --> 01:51:09,360 DEVICE. 2577 01:51:09,360 --> 01:51:11,320 FOR BOTH OF THESE THE BLACK 2578 01:51:11,320 --> 01:51:13,040 LINE -- SO GETTING THE DEVICE 2579 01:51:13,040 --> 01:51:14,840 INCREASED THE PRIMARY OUTCOME 2580 01:51:14,840 --> 01:51:19,320 AND ALSO INCREASED INITIATING 2581 01:51:19,320 --> 01:51:20,880 JOINT ATTENTION. 2582 01:51:20,880 --> 01:51:22,400 AN YOU GET SOME BENEFIT IF YOU 2583 01:51:22,400 --> 01:51:27,560 GET THE DEVICE IN THE SECOND 2584 01:51:27,560 --> 01:51:33,600 STAGE AFTER THREE MONTHS BUT NOT 2585 01:51:33,600 --> 01:51:34,560 NEARLY AS GREAT IF YOU GET IT 2586 01:51:34,560 --> 01:51:38,320 RIGHT FROM THE BEGINNING. 2587 01:51:38,320 --> 01:51:41,000 SO THE IMPORTANCE OF THE SPEECH 2588 01:51:41,000 --> 01:51:43,280 GENERATING DEVICE ADDED INTO A 2589 01:51:43,280 --> 01:51:44,280 BEHAVIORAL INTERVENTION RIGHT 2590 01:51:44,280 --> 01:51:47,320 FROM THE BEGINNING IS PRETTY 2591 01:51:47,320 --> 01:51:53,440 CLEAR FROM THESE DATA. 2592 01:51:53,440 --> 01:51:55,560 APPROXIMATELY 10% OF THE CODED 2593 01:51:55,560 --> 01:51:58,160 UTTERANCES WERE GENERATED ON THE 2594 01:51:58,160 --> 01:51:59,240 SPEECH-GENERATING DEVICE. 2595 01:51:59,240 --> 01:52:01,400 THE MAJORITY OF WHAT KIDS WERE 2596 01:52:01,400 --> 01:52:02,360 SAYING WAS SPOKEN AND THAT 2597 01:52:02,360 --> 01:52:08,160 SURPRISED US. 2598 01:52:08,160 --> 01:52:10,200 AND SPOKEN LANGUAGE IF WE CAN 2599 01:52:10,200 --> 01:52:15,720 DEVELOP IT IS MUCH MORE 2600 01:52:15,720 --> 01:52:17,000 EFFICIENT THEN USING THE DEVICE 2601 01:52:17,000 --> 01:52:18,360 BUT FOR CHILDREN WHO NEED THE 2602 01:52:18,360 --> 01:52:19,320 DEVICE HAVE ACCESS TO 2603 01:52:19,320 --> 01:52:20,320 COMMUNICATION. 2604 01:52:20,320 --> 01:52:25,160 SO THAT WAS A WIN-WIN BOTH WAYS. 2605 01:52:25,160 --> 01:52:26,800 THE IMPORTANCE OF THE BEHAVIORAL 2606 01:52:26,800 --> 01:52:27,760 INTERVENTION SHOULDN'T BE 2607 01:52:27,760 --> 01:52:30,400 OVERLOOKED. 2608 01:52:30,400 --> 01:52:35,280 SO IF WE JUST GAVE A CHILD AN 2609 01:52:35,280 --> 01:52:37,120 SGD IT PROBABLY WOULDN'T BE 2610 01:52:37,120 --> 01:52:37,880 SUCCESSFUL AND REMEMBER THESE 2611 01:52:37,880 --> 01:52:40,560 ARE CHILDREN WHO ARE LEARNING TO 2612 01:52:40,560 --> 01:52:44,080 USE THE LANGUAGE THEY NEED 2613 01:52:44,080 --> 01:52:45,000 SUPPORT TO LEARN. 2614 01:52:45,000 --> 01:52:47,040 THEY NEED A CONTEXT FOR 2615 01:52:47,040 --> 01:52:47,400 COMMUNICATION. 2616 01:52:47,400 --> 01:52:51,840 IN THIS INTERVENTION WE DID 2617 01:52:51,840 --> 01:52:53,280 ADULT MODELLING ON THE DEVICE IN 2618 01:52:53,280 --> 01:52:54,280 THE CONTEXT OF PLAIN 2619 01:52:54,280 --> 01:52:54,840 INTERACTIONS TO PRIORITIZE 2620 01:52:54,840 --> 01:53:00,800 COMMUNICATION. 2621 01:53:00,800 --> 01:53:01,800 SO IMITATION AS HELEN SAID IN 2622 01:53:01,800 --> 01:53:03,880 THE FIRST TALK IS IMPORTANT AND 2623 01:53:03,880 --> 01:53:06,080 IT WAS IMPORTANT HERE TOO 2624 01:53:06,080 --> 01:53:07,760 BECAUSE CHILDREN WOULD IMITATE 2625 01:53:07,760 --> 01:53:15,760 US MODELLING ON THE DEVICE. 2626 01:53:15,760 --> 01:53:19,320 THE IMPORTANCE OF THE 2627 01:53:19,320 --> 01:53:20,360 INTERCHANGES BETWEEN THE 2628 01:53:20,360 --> 01:53:22,360 DIFFICULT AND CHILD WITHIN THE 2629 01:53:22,360 --> 01:53:25,800 CONTEXT OF AN INTERVENTION IS 2630 01:53:25,800 --> 01:53:27,320 SHOWN HERE SO THESE ARE ALL THE 2631 01:53:27,320 --> 01:53:30,920 CHILDREN, THE SAME DATA SET AND 2632 01:53:30,920 --> 01:53:34,280 IT'S SHOWING YOU THAT WHAT IS 2633 01:53:34,280 --> 01:53:36,680 ADULT INITIATE AND WHAT IS CHILD 2634 01:53:36,680 --> 01:53:37,560 INITIATED INTERACTION. 2635 01:53:37,560 --> 01:53:39,960 AT ENTRY WE STILL HAVE MORE 2636 01:53:39,960 --> 01:53:41,360 CHILD INITIATED INTERACTIONS 2637 01:53:41,360 --> 01:53:42,840 THAN ADULT EVEN AT THE 2638 01:53:42,840 --> 01:53:43,280 BEGINNING. 2639 01:53:43,280 --> 01:53:48,400 BUT OVER THE COURSE OF THE 2640 01:53:48,400 --> 01:53:50,440 INTERVENTIONS THE GRAY PART OF 2641 01:53:50,440 --> 01:53:57,640 THE GRAPH ARE CHILD INITIATED 2642 01:53:57,640 --> 01:53:58,720 INTERCHANGES AND THOSE ARE 2643 01:53:58,720 --> 01:54:00,000 GROWING WHERE THE BLACK PART OF 2644 01:54:00,000 --> 01:54:04,680 THE BAR ARE ADULT INITIATED 2645 01:54:04,680 --> 01:54:07,240 EXCHANGES AND THEY'RE STAYING 2646 01:54:07,240 --> 01:54:07,480 STABLE. 2647 01:54:07,480 --> 01:54:08,000 THE IMPORTANCE OF THE 2648 01:54:08,000 --> 01:54:08,520 INTERACTION SHOULDN'T BE 2649 01:54:08,520 --> 01:54:18,480 OVERLOOKED. 2650 01:54:18,480 --> 01:54:19,920 SO MINIMALLY VERBAL CHILDREN CAN 2651 01:54:19,920 --> 01:54:22,880 BE SUPPORT TECHNOLOGY, SPEECH 2652 01:54:22,880 --> 01:54:24,720 GENERATING DEVICES DON'T INHIBIT 2653 01:54:24,720 --> 01:54:26,280 THE DEVELOPMENT OF SPEECH BUT 2654 01:54:26,280 --> 01:54:28,240 RATHER SUPPORT THAT DEVELOPMENT. 2655 01:54:28,240 --> 01:54:30,560 AND THESE DEVICES PROVIDE 2656 01:54:30,560 --> 01:54:33,080 COMMUNICATION ACCESS SO EVEN IF 2657 01:54:33,080 --> 01:54:38,440 A CHILD DOESN'T DEVELOP SPOKEN 2658 01:54:38,440 --> 01:54:39,320 LANGUAGE IT'S IMPORTANT TO 2659 01:54:39,320 --> 01:54:44,320 PROVIDE ACCESS TO COMMUNICATION. 2660 01:54:44,320 --> 01:54:46,160 WE NEED MORE RESEARCH ON WHAT 2661 01:54:46,160 --> 01:54:47,360 THE ACTIVE INGREDIENTS ARE 2662 01:54:47,360 --> 01:54:48,640 BECAUSE THEY'RE LIKELY TO BE 2663 01:54:48,640 --> 01:54:49,760 MULTICOMPONENT AND NEED TO 2664 01:54:49,760 --> 01:54:55,280 UNDERSTAND WHAT COMPONENTS ARE 2665 01:54:55,280 --> 01:54:55,840 REALLY IMPORTANT FOR WHICH 2666 01:54:55,840 --> 01:54:57,400 CHILDREN. 2667 01:54:57,400 --> 01:55:01,640 WE ALSO HAVE QUESTION HOW EARLY 2668 01:55:01,640 --> 01:55:03,360 WE SHOULD ADD IN TECHNOLOGY TO 2669 01:55:03,360 --> 01:55:04,680 EARLY INTERVENTION. 2670 01:55:04,680 --> 01:55:07,360 WE HAVE BEEN ADDING IT IN NOW 2671 01:55:07,360 --> 01:55:12,920 WITH EVEN PREVERBAL CHILDREN SO 2672 01:55:12,920 --> 01:55:14,120 2 AND 3-YEAR-OLD CHILDREN WITH 2673 01:55:14,120 --> 01:55:19,200 INTEREST IN THE DEVICE. 2674 01:55:19,200 --> 01:55:21,960 WE FIND THEY'LL USE AN iPAD WITH 2675 01:55:21,960 --> 01:55:23,960 THE SOFTWARE IN THE CONTEXT OF 2676 01:55:23,960 --> 01:55:29,200 INTERVENTION AND THEN DISCARD IT 2677 01:55:29,200 --> 01:55:31,320 ONCE THEY LEARN TO SPEAK 2678 01:55:31,320 --> 01:55:31,840 VERBALLY MORE SO IT'S GAI 2679 01:55:31,840 --> 01:55:36,520 TRANSITION. 2680 01:55:36,520 --> 01:55:38,840 WE ALSO NEED TO UNDERSTAND THE 2681 01:55:38,840 --> 01:55:40,640 MECHANISM OF HOW THE SPEECH 2682 01:55:40,640 --> 01:55:42,400 GENERATING DEVICE PROVIDES 2683 01:55:42,400 --> 01:55:42,880 BENEFIT. 2684 01:55:42,880 --> 01:55:45,040 IS IT THE MOTOR ASPECT OF 2685 01:55:45,040 --> 01:55:46,640 PRESSING THE BUTTON? 2686 01:55:46,640 --> 01:55:50,600 IS IT THE ADDED VISUAL AND 2687 01:55:50,600 --> 01:55:51,200 AUDITORY SUPPORT? 2688 01:55:51,200 --> 01:55:53,040 WE DON'T REALLY UNDERSTAND THAT 2689 01:55:53,040 --> 01:55:55,000 BUT I KNOW IT'S SOMETHING JANICE 2690 01:55:55,000 --> 01:55:56,280 WILL TALK ABOUT NEXT AND KNOWS 2691 01:55:56,280 --> 01:55:58,360 MUCH MORE ABOUT BUT I THINK THAT 2692 01:55:58,360 --> 01:56:02,160 THAT WILL BE IMPORTANT TO TRY 2693 01:56:02,160 --> 01:56:02,640 AND UNDERSTAND AS WELL. 2694 01:56:02,640 --> 01:56:04,360 AN FINALLY I THINK WE NEED MORE 2695 01:56:04,360 --> 01:56:09,040 STUDIES ON THESE KINDS OF 2696 01:56:09,040 --> 01:56:10,920 INTERVENTION DESIGNS THAT CAN 2697 01:56:10,920 --> 01:56:11,880 PERSONALIZE INTERVENTIONS SO IF 2698 01:56:11,880 --> 01:56:13,840 WE KNOW A CHILD NOT RESPONDING, 2699 01:56:13,840 --> 01:56:15,840 HOW LONG DO WE WAIT, AT WHAT 2700 01:56:15,840 --> 01:56:17,360 DOSE SHOULD WE PROVIDE THE 2701 01:56:17,360 --> 01:56:20,320 INTERVENTION AND WHAT SHOULD WE 2702 01:56:20,320 --> 01:56:22,040 SHIFT TO IF THE INTERVENTION NOT 2703 01:56:22,040 --> 01:56:23,320 DOING WHAT IT NEEDS TO BE DOING 2704 01:56:23,320 --> 01:56:31,480 TO HELP A CHILD TO SPEAK? 2705 01:56:31,480 --> 01:56:33,000 AND ALSO TO COMMUNICATE. 2706 01:56:33,000 --> 01:56:34,640 I WANT TO GIVE APPRECIATION TO 2707 01:56:34,640 --> 01:56:36,000 THE FUNDING FOR THIS KIND OF 2708 01:56:36,000 --> 01:56:38,000 RESEARCH AND IN THE RESEARCH 2709 01:56:38,000 --> 01:56:40,680 THAT WE HAVE CONTINUED THAT WERE 2710 01:56:40,680 --> 01:56:44,200 IN THE MIDST OF DOING WITH THIS 2711 01:56:44,200 --> 01:56:45,480 POPULATION OF INDIVIDUALS. 2712 01:56:45,480 --> 01:56:49,800 SO AUTISM SPEAKS PRIMARILY 2713 01:56:49,800 --> 01:56:55,640 FUNDED THIS PAST STUDY NIDCD AND 2714 01:56:55,640 --> 01:56:58,200 NICHD AND THE THERAPISTS AND 2715 01:56:58,200 --> 01:56:59,200 FAMILIES AND EVERYONE WHO 2716 01:56:59,200 --> 01:57:02,840 PARTICIPATED. 2717 01:57:02,840 --> 01:57:03,200 SO THANK YOU. 2718 01:57:03,200 --> 01:57:05,160 >> THANK YOU VERY MUCH, 2719 01:57:05,160 --> 01:57:05,480 DR. KASARI. 2720 01:57:05,480 --> 01:57:09,000 WE'LL HAVE QUESTIONS FOR BOTH 2721 01:57:09,000 --> 01:57:13,560 DR. KASARI AND DR. TAGER FLUS 2722 01:57:13,560 --> 01:57:14,040 BURG DURING THE IN THE 2723 01:57:14,040 --> 01:57:14,840 DISCUSSION AT THE END. 2724 01:57:14,840 --> 01:57:16,680 I'LL MOVE ALONG TO THE NEXT 2725 01:57:16,680 --> 01:57:18,920 PRESENTER, DR. JANICE LIGHT. 2726 01:57:18,920 --> 01:57:22,720 DR. LIGHT IS THE HINTZ FAMILY 2727 01:57:22,720 --> 01:57:25,320 ENDOWED CHAIR IN CHILDREN'S 2728 01:57:25,320 --> 01:57:27,640 COMMUNICATIVE COMPETENCE AND 2729 01:57:27,640 --> 01:57:32,000 DISORDERS AT PENN STATE 2730 01:57:32,000 --> 01:57:32,320 UNIVERSITY. 2731 01:57:32,320 --> 01:57:34,320 HER PRESENTATION IS AUGMENTATIVE 2732 01:57:34,320 --> 01:57:35,440 AND ALTERNATIVE SUPPORTS FOR 2733 01:57:35,440 --> 01:57:36,440 INDIVIDUALS WITH AUTISM. 2734 01:57:36,440 --> 01:57:38,440 DR. LIGHT, WELCOME. 2735 01:57:38,440 --> 01:57:55,640 >> THANK YOU SO MUCH. 2736 01:57:55,640 --> 01:57:56,520 IF IT'S AN OKAY I'LL SHARE MY 2737 01:57:56,520 --> 01:57:58,120 SCREEN. 2738 01:57:58,120 --> 01:58:00,600 FIRST AND FOREMOST THANK YOU FOR 2739 01:58:00,600 --> 01:58:03,880 THE OPPORTUNITY TO TALK WITH YOU 2740 01:58:03,880 --> 01:58:05,000 TODAY. 2741 01:58:05,000 --> 01:58:07,480 I'M THRILLED TO HEAR THAT THE 2742 01:58:07,480 --> 01:58:11,280 IACC IS INTERESTED IN THE AREA 2743 01:58:11,280 --> 01:58:12,840 OF AUGMENTATIVE AND ALTERNATIVE 2744 01:58:12,840 --> 01:58:13,880 COMMUNICATION. 2745 01:58:13,880 --> 01:58:14,960 I WANTED TO START BY THANKING 2746 01:58:14,960 --> 01:58:16,800 THE MANY CHILDREN AND ADULTS 2747 01:58:16,800 --> 01:58:21,040 WITH COMPLEX COMMUNICATION NEEDS 2748 01:58:21,040 --> 01:58:22,480 AND THEIR FAMILIES WHO HAVE 2749 01:58:22,480 --> 01:58:24,720 ALLOWED ME TO BE PART OF THEIR 2750 01:58:24,720 --> 01:58:25,040 LIVES. 2751 01:58:25,040 --> 01:58:26,000 I'VE LEARNED A TREMENDOUS AMOUNT 2752 01:58:26,000 --> 01:58:29,360 AND HOPE TO SHARE LESSONS I'VE 2753 01:58:29,360 --> 01:58:36,440 LEARNED WITH YOU TODAY. 2754 01:58:36,440 --> 01:58:38,760 THERE ARE MORE THAN 5 MILLION 2755 01:58:38,760 --> 01:58:40,560 AMERICANS, MORE THAN 97 2756 01:58:40,560 --> 01:58:42,320 INDIVIDUALS WORLDWIDE THAT HAVE 2757 01:58:42,320 --> 01:58:44,280 MINIMAL OR NO SPEECH AND ARE NOT 2758 01:58:44,280 --> 01:58:45,800 ABLE TO RELY ON THEIR SPEECH TO 2759 01:58:45,800 --> 01:58:46,440 MEET ALL OF THEIR COMMUNICATION 2760 01:58:46,440 --> 01:58:48,200 NEEDS. 2761 01:58:48,200 --> 01:58:50,800 AND THIS IS AN INCREDIBLY 2762 01:58:50,800 --> 01:58:51,240 DIVERSE GROUP. 2763 01:58:51,240 --> 01:58:53,600 IT CUTS ACROSS THE LIFE SPAN AND 2764 01:58:53,600 --> 01:58:56,760 IT INCLUDES INDIVIDUALS WHO HAVE 2765 01:58:56,760 --> 01:58:59,120 A WIDE RANGE OF NEEDS AND SKILLS 2766 01:58:59,120 --> 01:59:04,000 INCLUDING THOSE THAT HAVE BEEN 2767 01:59:04,000 --> 01:59:05,320 FACED COMMUNICATION CHALLENGES 2768 01:59:05,320 --> 01:59:06,800 SINCE BIRTH AND INCLUDES 2769 01:59:06,800 --> 01:59:08,160 INDIVIDUALS WITH ACQUIRED 2770 01:59:08,160 --> 01:59:09,720 DISABILITY OR CONDITIONS SUCH AS 2771 01:59:09,720 --> 01:59:19,280 THOSE FROM TRAUMATIC BRAIN 2772 01:59:19,280 --> 01:59:22,920 INJURIES OR STROKE OR ALS OR 2773 01:59:22,920 --> 01:59:26,200 ALZHEIMER'S AND THOSE WHO MAY BE 2774 01:59:26,200 --> 01:59:27,280 VENTILATOR DEPENDENT DUE TO 2775 01:59:27,280 --> 01:59:30,000 COVID AND OF COURSE IT INCLUDES 2776 01:59:30,000 --> 01:59:33,400 CHILDREN AND ADULLS ON THE 2777 01:59:33,400 --> 01:59:34,200 AUTISM SPECTRUM DISORDER AND 2778 01:59:34,200 --> 01:59:35,040 IT'S THESE INDIVIDUALS WE'LL BE 2779 01:59:35,040 --> 01:59:36,040 TALKING ABOUT THIS AFTERNOON. 2780 01:59:36,040 --> 01:59:40,400 WITHOUT ACCESS TO SPEECH THESE 2781 01:59:40,400 --> 01:59:41,400 INDIVIDUALS FACE CHALLENGES IN 2782 01:59:41,400 --> 01:59:42,920 EXPRESSING THEIR NEEDS AND 2783 01:59:42,920 --> 01:59:48,680 WANTS, INTERACTING SOCIALLY WITH 2784 01:59:48,680 --> 01:59:54,680 OTHERS AND SHARING THEIR 2785 01:59:54,680 --> 01:59:55,360 EXPERIENCES AND INFORMATION WITH 2786 01:59:55,360 --> 01:59:59,080 OTHERS AND RESTRICTED IN THEIR 2787 01:59:59,080 --> 02:00:00,800 ASPECTS OF LIFE, INCLUDE 2788 02:00:00,800 --> 02:00:01,520 EDUCATION, EMPLOYMENT, HEALTH 2789 02:00:01,520 --> 02:00:02,640 CARE, FAMILY LIFE, COMMUNITY 2790 02:00:02,640 --> 02:00:08,360 LIVING. 2791 02:00:08,360 --> 02:00:10,800 FORTUNATELY OVER THE PAST 30, 40 2792 02:00:10,800 --> 02:00:14,360 YEARS THERE'S BEEN ADVANCES IN 2793 02:00:14,360 --> 02:00:16,560 AUGMENTATIVE AND ALTERNATIVE 2794 02:00:16,560 --> 02:00:19,920 COMMUNICATION BETTER KNOWN AS 2795 02:00:19,920 --> 02:00:20,920 AAC. 2796 02:00:20,920 --> 02:00:23,000 IT OFFERS THE POTENTIAL TO 2797 02:00:23,000 --> 02:00:24,360 AUGMENT SPEECH, ENHANCE 2798 02:00:24,360 --> 02:00:25,960 COMMUNICATION BOTH COMPREHENSION 2799 02:00:25,960 --> 02:00:29,400 FOR THOSE WHO HAVE DIFFICULTY 2800 02:00:29,400 --> 02:00:30,400 UNDERSTANDING SPOKEN LANGUAGE AS 2801 02:00:30,400 --> 02:00:33,520 WELL AS EXPRESSION FOR THOSE WHO 2802 02:00:33,520 --> 02:00:34,240 HAVE DIFFICULTY USING SPEECH TO 2803 02:00:34,240 --> 02:00:37,600 MEET THEIR COMMUNICATION NEEDS. 2804 02:00:37,600 --> 02:00:39,560 THERE'S BEEN A SOMEWHAT NARROW 2805 02:00:39,560 --> 02:00:43,160 VIEW OF AAC WITHIN THE FIELD OF 2806 02:00:43,160 --> 02:00:46,120 AUTISM WITH THE BELIEF INITIALLY 2807 02:00:46,120 --> 02:00:47,960 AAC EQUALS THE PICTURE EXCHANGE 2808 02:00:47,960 --> 02:00:49,640 COMMUNICATION SYSTEM AND 2809 02:00:49,640 --> 02:00:55,440 RECENTLY THE BELIEF AAC EQUALS 2810 02:00:55,440 --> 02:00:59,280 PROLOGO TO GO AND IT IS A WIDE 2811 02:00:59,280 --> 02:01:04,560 AARRAY -- ARRAY OF TOOLS FOR 2812 02:01:04,560 --> 02:01:07,120 UNED AED AAC SUCH AS SIGNS AND 2813 02:01:07,120 --> 02:01:12,200 GESTURES, THE USE OF 2814 02:01:12,200 --> 02:01:12,880 LOW-NON-ELECTRONIC SYSTEMS SUCH 2815 02:01:12,880 --> 02:01:14,360 AS THE VISUAL SCHEDULE AND THE 2816 02:01:14,360 --> 02:01:18,760 USE OF A WIDE RANGE OF ASSISTIVE 2817 02:01:18,760 --> 02:01:21,520 TECHNOLOGIES THAT INCLUDE VERY 2818 02:01:21,520 --> 02:01:25,320 DIFFERENT REPRESENTATIONS 2819 02:01:25,320 --> 02:01:26,360 ORGANIZATIONS, TECHNIQUES AND 2820 02:01:26,360 --> 02:01:29,360 OUTPUTS OF LANGUAGE. 2821 02:01:29,360 --> 02:01:31,640 I HAVE THE HONOR AND PLEASURE TO 2822 02:01:31,640 --> 02:01:34,800 SERVE AS THE PRINCIPLE 2823 02:01:34,800 --> 02:01:35,280 INVESTIGATOR OF THE 2824 02:01:35,280 --> 02:01:41,560 REHABILITATION RESEARCH CENTER 2825 02:01:41,560 --> 02:01:44,760 ON AUGMENTATIVE COMMUNICATION 2826 02:01:44,760 --> 02:01:47,280 AND FUND THE NATIONAL INSTITUTE 2827 02:01:47,280 --> 02:01:49,040 ON INDEPENDENT LIVING AND 2828 02:01:49,040 --> 02:01:50,360 REHABILITATION RESEARCH HAS A 2829 02:01:50,360 --> 02:01:53,280 MANDATE TO CONDUCT RESEARCH TO 2830 02:01:53,280 --> 02:01:55,280 ADVANCE OUR KNOWLEDGE, IMPROVE 2831 02:01:55,280 --> 02:01:57,800 SERVICES AND IMPROVE OUTCOMES 2832 02:01:57,800 --> 02:01:59,600 FOR THIS POPULATION OF 2833 02:01:59,600 --> 02:02:02,360 INDIVIDUALS WHO HAVE COMPLEX 2834 02:02:02,360 --> 02:02:03,040 COMMUNICATION NEEDS. 2835 02:02:03,040 --> 02:02:04,880 TO CONDUCT DEVELOPMENT TO 2836 02:02:04,880 --> 02:02:09,160 IMPROVE AAC TECHNOLOGY 2837 02:02:09,160 --> 02:02:10,240 SOLUTIONS, TRAINING TO BUILD 2838 02:02:10,240 --> 02:02:12,000 CAPACITY IN THE FIELD AND 2839 02:02:12,000 --> 02:02:13,000 DISSEMINATION TO REACH ALL 2840 02:02:13,000 --> 02:02:16,600 STAKEHOLDER GROUPS TO INCREASE 2841 02:02:16,600 --> 02:02:19,320 AWARENESS AND KNOWLEDGE OUR GOAL 2842 02:02:19,320 --> 02:02:22,720 IS TO EXPAND WHAT IS POSSIBLE 2843 02:02:22,720 --> 02:02:26,760 FOR INDIVIDUAL WHO HAVE COMPLEX 2844 02:02:26,760 --> 02:02:28,680 COMMUNICATION NEEDS AND CANNOT 2845 02:02:28,680 --> 02:02:29,880 RELY ON THEIR SPEECH AND TO 2846 02:02:29,880 --> 02:02:31,320 ENSURE WHAT WE KNOW IS POSSIBLE 2847 02:02:31,320 --> 02:02:34,200 FROM THE RESEARCH. 2848 02:02:34,200 --> 02:02:36,840 IN FACT BECOMES WHAT IS PROBABLY 2849 02:02:36,840 --> 02:02:39,120 GOING TO OCCUR WITHIN THE LIVES 2850 02:02:39,120 --> 02:02:39,800 OF INDIVIDUAL WHO'S HAVE COMPLEX 2851 02:02:39,800 --> 02:02:42,000 COMMUNICATION NEEDS. 2852 02:02:42,000 --> 02:02:45,840 I'M GOING SHARE WITH YOU TODAY 2853 02:02:45,840 --> 02:02:50,320 NOT A SINGLE RESEARCH PROJECT 2854 02:02:50,320 --> 02:02:53,560 BUT SNAPSHOTS OF PROJECTS WE'RE 2855 02:02:53,560 --> 02:02:57,720 ENGAGED IN AT THE RRAC AT THE OF 2856 02:02:57,720 --> 02:03:01,280 AC AND I TRIED TO PROVIDE AN 2857 02:03:01,280 --> 02:03:02,400 EXTENSIVE LIST OF REFERENCES AT 2858 02:03:02,400 --> 02:03:05,480 THE END TO TRACK DOWN FURTHER 2859 02:03:05,480 --> 02:03:07,040 INFORMATION ABOUT ANY OF THEM. 2860 02:03:07,040 --> 02:03:08,680 I'M GOING TO FOCUS ON THE 2861 02:03:08,680 --> 02:03:09,520 PROJECTS THAT HAVE IMMEDIATE 2862 02:03:09,520 --> 02:03:12,480 APPLICATION TO CHILDREN AND 2863 02:03:12,480 --> 02:03:12,960 ADULTS WITH COMPLEX 2864 02:03:12,960 --> 02:03:13,800 COMMUNICATION NEEDS BUT I ALSO 2865 02:03:13,800 --> 02:03:16,560 WANTED TO LET YOU KNOW THAT WE 2866 02:03:16,560 --> 02:03:19,360 ARE ENGAGED AN WIDE RANGE OF 2867 02:03:19,360 --> 02:03:21,440 RESEARCH TO ADDRESS THE NEEDS OF 2868 02:03:21,440 --> 02:03:23,280 THE ENTIRE POPULATION AND THIS 2869 02:03:23,280 --> 02:03:25,240 IS JUST A SMALL EXAMPLE IN THE 2870 02:03:25,240 --> 02:03:28,680 PHOTO HERE OF SOME OF THE WORK 2871 02:03:28,680 --> 02:03:29,480 WE'RE CURRENTLY DOING ON 2872 02:03:29,480 --> 02:03:32,360 COMPUTER INTERFACE. 2873 02:03:32,360 --> 02:03:36,040 WORK WE'RE DOING ON LEVERAGING 2874 02:03:36,040 --> 02:03:37,200 MULTI-MODALITIES INCLUDING BRAIN 2875 02:03:37,200 --> 02:03:39,280 SIGNALS AND EMG SIGNALS, EYE 2876 02:03:39,280 --> 02:03:43,280 TRACKING, ETCETERA AND THE USE 2877 02:03:43,280 --> 02:03:44,320 OF ARTIFICIAL INTELLIGENCE TO 2878 02:03:44,320 --> 02:03:47,160 TRY TO DISAMBIGUATE WHAT WOULD 2879 02:03:47,160 --> 02:03:49,640 BE NOISY COMMUNICATION SIGNALS 2880 02:03:49,640 --> 02:03:54,400 SO INDIVIDUALS CAN EXPRESS IN AN 2881 02:03:54,400 --> 02:03:55,360 INDEPENDENT AND SELF-DETERMINED 2882 02:03:55,360 --> 02:03:56,800 WAY THEY'RE MESSAGE. 2883 02:03:56,800 --> 02:04:02,640 I BELIEVE ALL THE WORK HAS 2884 02:04:02,640 --> 02:04:04,240 IMPLICATIONS FOR ALL OF US 2885 02:04:04,240 --> 02:04:07,080 BECAUSE IT ALLOWS A SOCIETY MORE 2886 02:04:07,080 --> 02:04:10,800 INCLUSIVE AND ACCESSIBLE TO ALL 2887 02:04:10,800 --> 02:04:11,320 OF US. 2888 02:04:11,320 --> 02:04:15,400 OUR VISION ULTIMATELY TO TO 2889 02:04:15,400 --> 02:04:16,680 ENSURE ALL INDIVIDUALS INCLUDING 2890 02:04:16,680 --> 02:04:17,600 THOSE WITH THE MOST COMPLEX 2891 02:04:17,600 --> 02:04:22,240 NEEDS HAVE ACCESS TO EFFECTIVE 2892 02:04:22,240 --> 02:04:23,320 AAC TECHNOLOGIES AND 2893 02:04:23,320 --> 02:04:26,360 INTERVENTIONS TO ALLOW THEM TO 2894 02:04:26,360 --> 02:04:28,680 REALIZE WHAT IS A BASIC HUMAN 2895 02:04:28,680 --> 02:04:31,360 NEED, A BASIC HUMAN RIGHT AND A 2896 02:04:31,360 --> 02:04:31,800 BASIC HUMAN POWER OF 2897 02:04:31,800 --> 02:04:41,560 COMMUNICATION. 2898 02:04:41,560 --> 02:04:42,880 WHAT DO AWAY KNOW ABOUT AAC 2899 02:04:42,880 --> 02:04:44,840 INDIVIDUALS FOR AUTISM? 2900 02:04:44,840 --> 02:04:47,000 THERE'S A SOLID AND RAPIDLY 2901 02:04:47,000 --> 02:04:48,400 GROWING BODY OF RESEARCH AND 2902 02:04:48,400 --> 02:04:50,000 DEMONSTRATES THE FOLLOWING. 2903 02:04:50,000 --> 02:04:52,600 FIRST OF ALL, AAC INTERVENTIONS 2904 02:04:52,600 --> 02:04:55,280 ENHANCE COMMUNICATION FOR 2905 02:04:55,280 --> 02:04:57,320 INDIVIDUALS ON THE AUTISM 2906 02:04:57,320 --> 02:05:00,640 SPECTRUM, INCREASE TURN TAKING, 2907 02:05:00,640 --> 02:05:02,440 INCREASE REQUESTING, INCREASE 2908 02:05:02,440 --> 02:05:04,600 COMMENTING, ETCETERA. 2909 02:05:04,600 --> 02:05:07,360 WE ALSO HAVE EVIDENCE AAC 2910 02:05:07,360 --> 02:05:09,520 INTERVENTIONS ENHANCE LANGUAGE 2911 02:05:09,520 --> 02:05:10,720 DEVELOPMENT, INCREASE THE 2912 02:05:10,720 --> 02:05:13,440 ACQUISITION AND USE OF 2913 02:05:13,440 --> 02:05:14,200 VOCABULARY, INCREASE THE 2914 02:05:14,200 --> 02:05:16,920 COMPLEXITY OF MESSAGES THAT CAN 2915 02:05:16,920 --> 02:05:19,160 BE COMMUNICATED TO OTHERS. 2916 02:05:19,160 --> 02:05:22,880 WE KNOW AAC INTERVENTION CAN 2917 02:05:22,880 --> 02:05:25,000 INCREASE PARTICIPATION IN 2918 02:05:25,000 --> 02:05:26,720 SOCIETY, IN EDUCATION, IN 2919 02:05:26,720 --> 02:05:29,880 EMPLOYMENT, IN COMMUNITY 2920 02:05:29,880 --> 02:05:32,760 ACTIVITIES AND WE KNOW AAC 2921 02:05:32,760 --> 02:05:34,040 INTERVENTION CAN DECREASE 2922 02:05:34,040 --> 02:05:36,440 SIGNIFICANTLY THE CHALLENGING 2923 02:05:36,440 --> 02:05:38,400 BEHAVIORS THAT TOO OFTEN OCCUR 2924 02:05:38,400 --> 02:05:43,360 WHEN INDIVIDUALS DO NOT HAVE 2925 02:05:43,360 --> 02:05:44,600 WAYS TO COMMUNICATE EFFECTIVELY 2926 02:05:44,600 --> 02:05:46,800 WITH OTHERS AND NEED TO RELY ON 2927 02:05:46,800 --> 02:05:48,240 CHALLENGING BEHAVIORS TO EXPRESS 2928 02:05:48,240 --> 02:05:48,560 THEMSELVES. 2929 02:05:48,560 --> 02:05:50,240 AND AS CONNIE JUST ILLUSTRATED 2930 02:05:50,240 --> 02:05:53,240 TO US, ALL THESE BENEFITS COME 2931 02:05:53,240 --> 02:05:56,120 AT NO RISK TO SPEECH 2932 02:05:56,120 --> 02:05:56,400 DEVELOPMENT. 2933 02:05:56,400 --> 02:05:58,000 IN FACT, THE RESEARCH 2934 02:05:58,000 --> 02:06:01,000 DEMONSTRATES AAC ENHANCES SPEECH 2935 02:06:01,000 --> 02:06:02,000 PRODUCTION INCLUDING FOR 2936 02:06:02,000 --> 02:06:03,400 CHILDREN AND ADULTS ON THE 2937 02:06:03,400 --> 02:06:08,120 AUTISM SPECTRUM. 2938 02:06:08,120 --> 02:06:10,200 BUT THESE BENEFITS ARE 2939 02:06:10,200 --> 02:06:14,320 PREDICATED ON EQUAL ACCESS TO 2940 02:06:14,320 --> 02:06:14,960 AAC INTERVENTION. 2941 02:06:14,960 --> 02:06:17,720 A SUFFICIENT INTENSITY TO ATTAIN 2942 02:06:17,720 --> 02:06:18,560 MEANINGFUL GAINS AND CONNIE 2943 02:06:18,560 --> 02:06:20,360 TALKED TO US ABOUT INDIVIDUALS 2944 02:06:20,360 --> 02:06:25,160 HAVING ACCESS TO TWO HOURS OF 2945 02:06:25,160 --> 02:06:27,520 INTERVENTION ONE-ON-ONE IN AAC 2946 02:06:27,520 --> 02:06:28,760 TO REALIZE THE MEANINGFUL GAINS 2947 02:06:28,760 --> 02:06:31,040 WITHIN HER STUDY. 2948 02:06:31,040 --> 02:06:33,080 I WANTED TO SHARE WITH YOU 2949 02:06:33,080 --> 02:06:34,880 DISTURBING RESULTS FROM A RECENT 2950 02:06:34,880 --> 02:06:36,560 STUDY ONE OF OUR DOCTORAL 2951 02:06:36,560 --> 02:06:38,600 STUDENTS JUST FINISHED HOT OFF 2952 02:06:38,600 --> 02:06:40,240 THE PRESS. 2953 02:06:40,240 --> 02:06:44,280 AND THE RESULTS SHOWED 35% OF 2954 02:06:44,280 --> 02:06:45,880 WHITE PRESCHOOLERS WERE 2955 02:06:45,880 --> 02:06:46,840 RECEIVING LESS THAN 60 MINUTES 2956 02:06:46,840 --> 02:06:50,000 OF AAC INTERVENTION PER WEEK AND 2957 02:06:50,000 --> 02:06:52,800 THIS WAS NOT LIMITED TO 2958 02:06:52,800 --> 02:06:54,600 ONE-ON-ONE INTERVENTION, ANY 2959 02:06:54,600 --> 02:06:58,640 TYPE OF AAC INTERVENTION IN THE 2960 02:06:58,640 --> 02:06:59,000 WEEK. 2961 02:06:59,000 --> 02:07:01,440 AND MOST DISTURBINGLY, 65% OF 2962 02:07:01,440 --> 02:07:02,640 BLACK CHILDREN RECEIVED LESS 2963 02:07:02,640 --> 02:07:06,120 THAN 60 MINUTES OF AAC 2964 02:07:06,120 --> 02:07:07,280 INTERVENTION PER WEEK. 2965 02:07:07,280 --> 02:07:09,240 NOWHERE NEAR ENOUGH TO ATTAIN 2966 02:07:09,240 --> 02:07:11,320 MEANINGFUL GAINS IN THEIR 2967 02:07:11,320 --> 02:07:11,880 COMMUNICATION AND LANGUAGE 2968 02:07:11,880 --> 02:07:13,800 SKILLS. 2969 02:07:13,800 --> 02:07:16,960 CLEARLY THERE'S AN URGENT NEED 2970 02:07:16,960 --> 02:07:19,160 FOR SYSTEM CHANGE TO ADDRESS THE 2971 02:07:19,160 --> 02:07:20,200 INEQUITIES AND ENSURE EQUAL 2972 02:07:20,200 --> 02:07:22,760 ACCESS TO AAC SERVICES 2973 02:07:22,760 --> 02:07:26,320 REGARDLESS OF RACE, ETHNICITY, 2974 02:07:26,320 --> 02:07:34,600 FIRST LANGUAGE, ETCETERA. 2975 02:07:34,600 --> 02:07:36,200 I'M GOING TO ARGUE WE NEED TO 2976 02:07:36,200 --> 02:07:41,920 PROVIDE AAC INTERVENTION AS SOON 2977 02:07:41,920 --> 02:07:50,320 AS POSSIBLE. 2978 02:07:50,320 --> 02:07:52,320 AAC EXPORTS COMMUNICATION AND 2979 02:07:52,320 --> 02:07:54,320 LANGUAGE DEVELOPMENT -- SUPPORTS 2980 02:07:54,320 --> 02:07:54,960 COMMUNICATION AND LANGUAGE 2981 02:07:54,960 --> 02:07:56,000 DEVELOP. 2982 02:07:56,000 --> 02:07:59,240 SO WE NEED TO START BEFORE 2983 02:07:59,240 --> 02:08:00,600 CHILDREN WITH AUTISM FALL 2984 02:08:00,600 --> 02:08:01,600 FURTHER AND FURTHER BEHIND THEIR 2985 02:08:01,600 --> 02:08:01,960 PEERS. 2986 02:08:01,960 --> 02:08:08,360 IN OUR WORK IN OUR LAB WITH A 2987 02:08:08,360 --> 02:08:11,720 WIDE VARIETY OF CHILDREN WE'RE 2988 02:08:11,720 --> 02:08:13,480 WORKING WITH INDIVIDUALS WELL 2989 02:08:13,480 --> 02:08:17,600 UNDER 12 MONTHS OF AGE AND MANY 2990 02:08:17,600 --> 02:08:20,360 TO APPROPRIATELY DESIGN 2991 02:08:20,360 --> 02:08:22,800 ASSISTIVE TECHNOLOGIES ARE 2992 02:08:22,800 --> 02:08:24,600 ACCESSING AND ACQUIRING THEIR 2993 02:08:24,600 --> 02:08:26,600 FIRST WORDS AT 10 MONTHS AND 9 2994 02:08:26,600 --> 02:08:28,400 MONTHS OF AGE SOME BEFORE THEIR 2995 02:08:28,400 --> 02:08:31,520 TYPICAL PEERS ARE LEARNING HOW 2996 02:08:31,520 --> 02:08:31,800 TO SPEAK. 2997 02:08:31,800 --> 02:08:34,680 HAVING SAID THAT, IT'S NEVER TOO 2998 02:08:34,680 --> 02:08:37,120 LATE TO PROVIDE AAC 2999 02:08:37,120 --> 02:08:38,000 INTERVENTIONS AND UNFORTUNATELY 3000 02:08:38,000 --> 02:08:40,440 MANY ADOLESCENTS AND ADULTS 3001 02:08:40,440 --> 02:08:43,120 NEVER RECEIVED ACCESS TO AAC AND 3002 02:08:43,120 --> 02:08:45,520 SO EVEN AT THOSE LATER AGES THEY 3003 02:08:45,520 --> 02:08:47,040 STILL LACK WAYS TO COMMUNICATE 3004 02:08:47,040 --> 02:08:49,720 EFFECTIVELY AND THE RESEARCH IN 3005 02:08:49,720 --> 02:08:54,360 OUR LAB WOULD SUGGEST WE CAN 3006 02:08:54,360 --> 02:08:55,000 STILL ATTAIN MEANINGFUL CHANGES 3007 02:08:55,000 --> 02:08:56,400 BY PROVIDING ACCESS TO 3008 02:08:56,400 --> 02:09:05,800 APPROPRIATE AAC. 3009 02:09:05,800 --> 02:09:07,320 TOO OFTEN OUR INTERVENTIONS 3010 02:09:07,320 --> 02:09:09,320 FOCUS SOLELY ON REQUESTING BUT 3011 02:09:09,320 --> 02:09:11,600 AS ONE MOM SAID TO ME, THERE'S 3012 02:09:11,600 --> 02:09:14,400 MORE TO LIFE THAN JUST ASKING 3013 02:09:14,400 --> 02:09:19,840 FOR COOKIES. 3014 02:09:19,840 --> 02:09:23,040 WE NEED TO TARGET INDEPENDENT 3015 02:09:23,040 --> 02:09:24,240 COMMUNICATION TO FULFILL A WIDE 3016 02:09:24,240 --> 02:09:26,360 RANGE OF NEEDS NOT JUST THE 3017 02:09:26,360 --> 02:09:28,400 EXPRESSION OF NEEDS AND WANTS 3018 02:09:28,400 --> 02:09:30,600 AND BUILDING MEANINGFUL 3019 02:09:30,600 --> 02:09:32,360 RELATIONSHIPS WITH OTHERS. 3020 02:09:32,360 --> 02:09:34,440 INFORMATION EXCHANGE COMMENTING 3021 02:09:34,440 --> 02:09:38,640 TO ALLOW PEOPLE TO SHARE THEIR 3022 02:09:38,640 --> 02:09:38,960 EXPERIENCES. 3023 02:09:38,960 --> 02:09:41,040 AND THESE LAST TWO FUNCTIONS ARE 3024 02:09:41,040 --> 02:09:42,240 ESPECIALLY IMPORTANT BECAUSE 3025 02:09:42,240 --> 02:09:45,000 THESE ARE SOME OF THE CORE 3026 02:09:45,000 --> 02:09:47,240 CHALLENGES FACED BY CHILDREN AND 3027 02:09:47,240 --> 02:09:50,520 ADULTS WHO ARE ON THE AUTISM 3028 02:09:50,520 --> 02:09:59,840 SPECTRUM. 3029 02:09:59,840 --> 02:10:04,280 IN ORDER TO ATTAIN THESE GOALS 3030 02:10:04,280 --> 02:10:06,600 AND MANY DEVICES ARE NOT 3031 02:10:06,600 --> 02:10:07,760 RESEARCH BASED. 3032 02:10:07,760 --> 02:10:10,960 THEY'VE BEEN DEVELOPED BY NEURO 3033 02:10:10,960 --> 02:10:13,800 TYPICAL ADULT AND OFTEN COMPUTER 3034 02:10:13,800 --> 02:10:16,120 PROGRAMMERS OR ENGINEERS OR 3035 02:10:16,120 --> 02:10:17,280 CLINICIAN AND REFLECT HOW THE 3036 02:10:17,280 --> 02:10:18,200 INDIVIDUALS THINK ABOUT THE 3037 02:10:18,200 --> 02:10:20,400 WORLD BUT DO NOT REFLECT THE 3038 02:10:20,400 --> 02:10:22,400 WAYS CHILDREN AND ADULTS WITH 3039 02:10:22,400 --> 02:10:24,240 COMPLEX COMMUNICATION THINK 3040 02:10:24,240 --> 02:10:26,360 ABOUT THE WORLD AND AS A RESULT 3041 02:10:26,360 --> 02:10:28,720 THEY MAY BE DIFFICULT TO LEARN 3042 02:10:28,720 --> 02:10:32,640 AND MAY NOT BE VERY APPEALING TO 3043 02:10:32,640 --> 02:10:33,080 USE. 3044 02:10:33,080 --> 02:10:35,200 I'M GOING TO ARGUE AAC 3045 02:10:35,200 --> 02:10:35,880 TECHNOLOGIES NEED TO BE 3046 02:10:35,880 --> 02:10:38,320 REDESIGNED TO BETTER REFLECT THE 3047 02:10:38,320 --> 02:10:43,280 NEEDS AND SKILLS OF THE 3048 02:10:43,280 --> 02:10:45,080 INDIVIDUALS THEMSELVES WHO ARE 3049 02:10:45,080 --> 02:10:48,200 USING THEM THOSE WITH COMPLEX 3050 02:10:48,200 --> 02:10:49,040 COMMUNICATION NEEDS AND NEED TO 3051 02:10:49,040 --> 02:10:50,360 BE DESIGNED TO REFLECT THE 3052 02:10:50,360 --> 02:10:52,720 SCIENCE, WHAT WE KNOW ABOUT 3053 02:10:52,720 --> 02:10:56,800 MOTOR DEVELOPMENT, VISION 3054 02:10:56,800 --> 02:11:05,320 DEVELOPMENT, HEARING, COG 3055 02:11:05,320 --> 02:11:07,200 ANYTHI 3056 02:11:07,200 --> 02:11:09,280 COGNITION AND SO EASY TO USE NO 3057 02:11:09,280 --> 02:11:10,720 TIME GOES TO USING THE 3058 02:11:10,720 --> 02:11:11,080 TECHNOLOGY. 3059 02:11:11,080 --> 02:11:12,680 THERE'S NO INHERENT VALUE IN 3060 02:11:12,680 --> 02:11:15,800 BEING ABLE TO OPERATE AN AAC 3061 02:11:15,800 --> 02:11:16,000 DEVICE. 3062 02:11:16,000 --> 02:11:18,560 IT IS SIMPLY A TOOL TO ALLOW US 3063 02:11:18,560 --> 02:11:21,520 TO COMMUNICATE AND INTERACT 3064 02:11:21,520 --> 02:11:23,320 SOCIALLY AND THE VALUE COMES 3065 02:11:23,320 --> 02:11:26,400 FROM THOSE END GOALS. 3066 02:11:26,400 --> 02:11:27,600 THOSE SYSTEM NEED TO BE POWERFUL 3067 02:11:27,600 --> 02:11:31,280 TO PROVIDE ACCESS TO 3068 02:11:31,280 --> 02:11:37,040 COMMUNICATION AND PARTICIPATION. 3069 02:11:37,040 --> 02:11:38,800 FAR OFTEN WE SEE AAC 3070 02:11:38,800 --> 02:11:40,400 TECHNOLOGIES ARE PRESCRIBED NOT 3071 02:11:40,400 --> 02:11:42,200 BASED ON THE NEEDS AND SKILLS 3072 02:11:42,200 --> 02:11:43,800 AND PREFERENCES OF THOSE 3073 02:11:43,800 --> 02:11:47,280 INDIVIDUALS WHO WILL BE USING 3074 02:11:47,280 --> 02:11:53,840 THEM BUT RATHER BASED ON 3075 02:11:53,840 --> 02:11:55,040 CLINICIAN FAMILIARITY OR OF 3076 02:11:55,040 --> 02:11:55,320 FAMILIES. 3077 02:11:55,320 --> 02:11:57,040 ONE SIZE DOES NOT FIT ALL AND WE 3078 02:11:57,040 --> 02:11:58,800 NEED TO DEVELOP A GREATER RANGE 3079 02:11:58,800 --> 02:12:03,000 OF AAC TECHNOLOGIES THAT CAN BE 3080 02:12:03,000 --> 02:12:04,520 PERSONALIZED TO MEET THE 3081 02:12:04,520 --> 02:12:06,320 INDIVIDUAL'S NEEDS, SKILLS AND 3082 02:12:06,320 --> 02:12:08,400 PREFERENCES INCLUDING THE VOE 3083 02:12:08,400 --> 02:12:11,000 VOCABULARY WE PROVIDE AND THE 3084 02:12:11,000 --> 02:12:12,880 REPRESENTATION OF THAT 3085 02:12:12,880 --> 02:12:14,240 VOCABULARY AND THE ORGANIZATION 3086 02:12:14,240 --> 02:12:17,160 AND LAYOUT AND SELECTION AND 3087 02:12:17,160 --> 02:12:17,640 OUTPUT. 3088 02:12:17,640 --> 02:12:18,960 WE HAVE QUITE A LITTLE BIT OF 3089 02:12:18,960 --> 02:12:22,560 RESEARCH IN OUR LAB THAT'S 3090 02:12:22,560 --> 02:12:24,320 LOOKING AT THE VISUAL COGNITIVE 3091 02:12:24,320 --> 02:12:27,320 DEMANDS OF USING AAC 3092 02:12:27,320 --> 02:12:30,440 TECHNOLOGIES AND THE MOTOR 3093 02:12:30,440 --> 02:12:32,400 DEMANDS AND THE RESEARCH 3094 02:12:32,400 --> 02:12:34,280 CONSISTENTLY DEMONSTRATE EVEN 3095 02:12:34,280 --> 02:12:38,400 VERY SMALL CHANGES TO AAC 3096 02:12:38,400 --> 02:12:43,480 DISPLAYS CHANGES IN COLOR, 3097 02:12:43,480 --> 02:12:47,800 CHANGES IN LAYOUT AND SPACING 3098 02:12:47,800 --> 02:12:51,280 AND ORGANIZATION IMPACT THE 3099 02:12:51,280 --> 02:12:54,240 ACCURACY WITH WHICH AND THE 3100 02:12:54,240 --> 02:12:55,000 EFFICIENCY WITH WHICH 3101 02:12:55,000 --> 02:12:56,000 INDIVIDUALS ARE ABLE TO 3102 02:12:56,000 --> 02:12:56,320 COMMUNICATE. 3103 02:12:56,320 --> 02:13:03,360 WE NEED TO FIGURE OUT WHICH AAC 3104 02:13:03,360 --> 02:13:05,800 TECHNOLOGIES WORK BEST FOR WHOM 3105 02:13:05,800 --> 02:13:07,160 UNDER WHAT CONDITIONS. 3106 02:13:07,160 --> 02:13:12,600 WHAT WE'VE TRADITIONALLY DONE IS 3107 02:13:12,600 --> 02:13:26,400 USE PICTURES AND LAY THOSE OUT 3108 02:13:26,400 --> 02:13:29,200 WITHIN A GRID OR COLUMNS BUT THE 3109 02:13:29,200 --> 02:13:31,320 RESEARCH INDICATES CHILDREN HAVE 3110 02:13:31,320 --> 02:13:34,280 DIFFICULTY LEARNING TO USE THE 3111 02:13:34,280 --> 02:13:35,280 SYSTEMS. 3112 02:13:35,280 --> 02:13:38,400 THEY SEEM TO REQUIRE SOME LEVEL 3113 02:13:38,400 --> 02:13:39,560 OF LINGUISTIC SKILLS AND ONE OF 3114 02:13:39,560 --> 02:13:40,560 THE REASONS IS BECAUSE THEY TAKE 3115 02:13:40,560 --> 02:13:42,640 THE LANGUAGE OUT OF THE CONTEXT 3116 02:13:42,640 --> 02:13:46,120 IN WHICH IT IS LEARNED AND USED. 3117 02:13:46,120 --> 02:13:48,600 THAT MEANS THEY ARE ESPECIALLY 3118 02:13:48,600 --> 02:13:50,400 DIFFICULT FOR BEGINNING 3119 02:13:50,400 --> 02:13:52,720 COMMUNICATORS AT THE VERY EARLY 3120 02:13:52,720 --> 02:13:57,800 STAGES OF COMMUNICATION WHO ARE 3121 02:13:57,800 --> 02:14:03,200 LEARNING FIRST WORDS AND LOOKING 3122 02:14:03,200 --> 02:14:08,080 AT ALTERNATIVES WITH VIDEO 3123 02:14:08,080 --> 02:14:09,600 DISPLAYS AND THEY'RE SIMPLY 3124 02:14:09,600 --> 02:14:12,880 PHOTOGRAPHS OR VIDEOS OF 3125 02:14:12,880 --> 02:14:14,000 MEANINGFUL EVENTS WITHIN THE 3126 02:14:14,000 --> 02:14:16,440 CHILD'S OR ADULTS LIFE WITHIN 3127 02:14:16,440 --> 02:14:18,520 THE BEGINNING COMMUNICATOR'S 3128 02:14:18,520 --> 02:14:18,720 LIFE. 3129 02:14:18,720 --> 02:14:21,640 HERE WE SNAPPED A PHOTO OF LUCY, 3130 02:14:21,640 --> 02:14:23,240 ONE OF HER FAVORITE GAMES 3131 02:14:23,240 --> 02:14:25,080 PLAYING TELEPHONE WITH HER 3132 02:14:25,080 --> 02:14:26,960 MOTHER AND WHAT WE'LL DO IS 3133 02:14:26,960 --> 02:14:29,720 SIMPLY TAKE THIS LIFE EVENT IN 3134 02:14:29,720 --> 02:14:30,960 WHICH LUCY IS LEARNING LANGUAGE 3135 02:14:30,960 --> 02:14:33,240 AND EMBED THE VOCABULARY 3136 02:14:33,240 --> 02:14:35,520 CONCEPTS AS HOT SPOTS WITHIN THE 3137 02:14:35,520 --> 02:14:38,400 VISUAL SCENE DISPLAY SO SHE CAN 3138 02:14:38,400 --> 02:14:41,960 TOUCH THE PHONE TO RETRIEVE THE 3139 02:14:41,960 --> 02:14:53,480 SPEECH OUTPUT TELEPHONE, RING. 3140 02:14:53,480 --> 02:14:57,360 OR USE IT AROUND HER MOUTH TO 3141 02:14:57,360 --> 02:15:00,080 SAY TALK. 3142 02:15:00,080 --> 02:15:03,880 THE VIDEO DISPLAYS OFFER 3143 02:15:03,880 --> 02:15:08,440 ADVANTAGES FROM A LINGUISTIC 3144 02:15:08,440 --> 02:15:11,200 COMMUNICATORS AT THE FIRST WORD 3145 02:15:11,200 --> 02:15:11,400 STAGE. 3146 02:15:11,400 --> 02:15:12,600 THEY OFFER SIGNIFICANT 3147 02:15:12,600 --> 02:15:13,760 ADVANTAGES VISUALLY. 3148 02:15:13,760 --> 02:15:15,200 OUR EYE TRACKING RESEARCH HAS 3149 02:15:15,200 --> 02:15:18,360 SHOWN IN FACT THESE TYPES OF 3150 02:15:18,360 --> 02:15:21,120 DISPLAYS ARE ATTENDED TO LONGER 3151 02:15:21,120 --> 02:15:23,160 AND ATTRACT ATTENTION MORE 3152 02:15:23,160 --> 02:15:25,680 QUICKLY THAN GREAT DISPLAYS AND 3153 02:15:25,680 --> 02:15:27,280 PROCESSED MORE RAPIDLY BY 3154 02:15:27,280 --> 02:15:29,800 INDIVIDUALS ON THE AUTISM 3155 02:15:29,800 --> 02:15:31,200 SPECTRUM. 3156 02:15:31,200 --> 02:15:33,160 AND INTERESTINGLY ENOUGH THE 3157 02:15:33,160 --> 02:15:33,920 DISPLAYS DRIVE VISUAL ATTENTION 3158 02:15:33,920 --> 02:15:36,400 TO THE KEY LANGUAGE CONCEPTS IN 3159 02:15:36,400 --> 02:15:38,400 THE EVENT, THE PEOPLE, THE 3160 02:15:38,400 --> 02:15:40,200 ACTIONS AND THE SHARED ACTIVITY. 3161 02:15:40,200 --> 02:15:43,200 IN THIS CASE, THE LITTLE BOY 3162 02:15:43,200 --> 02:15:48,600 TREVOR, HIS DOG, BLUE, AND 3163 02:15:48,600 --> 02:15:51,120 KISSES FOR WET KISSES. 3164 02:15:51,120 --> 02:15:52,760 THESE ARE THE FIRST WORDS OR 3165 02:15:52,760 --> 02:15:56,400 LANGUAGE CONCEPT OCCUR IN 3166 02:15:56,400 --> 02:15:58,840 LANGUAGE DEVELOPMENT BOTH WITH 3167 02:15:58,840 --> 02:16:00,000 CHILDREN NEURO TYPICAL AS WELL 3168 02:16:00,000 --> 02:16:04,200 AS THOSE ON THE AUTISM SPECTRUM. 3169 02:16:04,200 --> 02:16:07,280 VIDEO VSDs ARE EXCITING BECAUSE 3170 02:16:07,280 --> 02:16:08,320 THEY'RE EASY AND QUICK TO 3171 02:16:08,320 --> 02:16:12,200 PROGRAM AND THEY SUPPORT JUST IN 3172 02:16:12,200 --> 02:16:13,600 TIME PROGRAMMING OF VOCABULARY 3173 02:16:13,600 --> 02:16:14,960 IN THE MOMENT AS REQUIRED. 3174 02:16:14,960 --> 02:16:16,520 AND THAT MEANS THAT AS I'M 3175 02:16:16,520 --> 02:16:19,400 INTERACTING WITH A CHILD AND 3176 02:16:19,400 --> 02:16:20,720 THEY SHOW INTEREST IN AN EVENT 3177 02:16:20,720 --> 02:16:22,200 OR OBJECT OR ACTIVITY I CAN 3178 02:16:22,200 --> 02:16:24,920 QUICKLY AND EASILY CAPTURE THAT 3179 02:16:24,920 --> 02:16:25,800 EVENT AND PROVIDE THE CHILD 3180 02:16:25,800 --> 02:16:27,280 IMMEDIATELY WITH ACCESS TO THE 3181 02:16:27,280 --> 02:16:30,000 NEEDED VOCABULARY. 3182 02:16:30,000 --> 02:16:34,640 AND MORE EXCITING IS THE FACT 3183 02:16:34,640 --> 02:16:35,720 THAT OUR RESEARCH SHOWS KIDS AS 3184 02:16:35,720 --> 02:16:37,120 YOUNG AS 12 MONTHS CAN BE 3185 02:16:37,120 --> 02:16:39,400 ACTIVELY ENGAGED IN CAPTURING 3186 02:16:39,400 --> 02:16:43,360 THEIR OWN EVENTS AND THEIR OWN 3187 02:16:43,360 --> 02:16:44,120 VOCABULARY. 3188 02:16:44,120 --> 02:16:45,400 THEY CAN HELP TO TAKE THE 3189 02:16:45,400 --> 02:16:47,240 PICTURES OR VIDEOS TO FINDING 3190 02:16:47,240 --> 02:16:50,320 THE HOT SPOTS, ETCETERA. 3191 02:16:50,320 --> 02:16:52,200 INTRODUCTION OF AAC TECHNOLOGIES 3192 02:16:52,200 --> 02:16:57,680 WITH VSDs AND VIDEO VSDs OUR 3193 02:16:57,680 --> 02:16:58,560 RESEARCH SHOWS SUPPORT 3194 02:16:58,560 --> 02:17:01,400 COMMUNICATION TERMS AND INCREASE 3195 02:17:01,400 --> 02:17:01,960 VOCABULARY ACQUISITION AND 3196 02:17:01,960 --> 02:17:03,320 EXPRESSION AND GREATER DIVERSITY 3197 02:17:03,320 --> 02:17:11,240 OF VOCABULARY EXPRESSED. 3198 02:17:11,240 --> 02:17:13,400 VIDEO VSDs ARE EXCITING BECAUSE 3199 02:17:13,400 --> 02:17:14,400 THEY'RE EASY FOR PEERS TO 3200 02:17:14,400 --> 02:17:15,720 UNDERSTAND AND LEARN AND WE'VE 3201 02:17:15,720 --> 02:17:17,640 HAD A SERIES OF RESEARCH STUDIES 3202 02:17:17,640 --> 02:17:20,920 LED BY SOME OF THE DOCTORAL 3203 02:17:20,920 --> 02:17:23,280 STUDENTS IN OUR LAB THAT LOOKED 3204 02:17:23,280 --> 02:17:26,400 AT INVESTIGATING THE IMPACT OF 3205 02:17:26,400 --> 02:17:32,920 VSDs AND VIDEO VSDs ON SOCIAL 3206 02:17:32,920 --> 02:17:34,320 INTERACTION WITH CHILDREN IN 3207 02:17:34,320 --> 02:17:35,240 AUTISM SPECTRUM AND THEIR PEERS 3208 02:17:35,240 --> 02:17:37,000 AND STUDIES THAT LOOKED AT 3209 02:17:37,000 --> 02:17:40,960 SHARED BOOK ACTIVITIES AND STUDY 3210 02:17:40,960 --> 02:17:43,800 THAT'S LOOKED AT INTERACTIONS 3211 02:17:43,800 --> 02:17:45,680 AROUND PREFERRED VIDEOS AND 3212 02:17:45,680 --> 02:17:48,640 SEVERAL STUDIES THAT HAVE LOOKED 3213 02:17:48,640 --> 02:17:49,600 AT PLAY BETWEEN SCHOOL AGE 3214 02:17:49,600 --> 02:17:50,360 CHILDREN WITH AUTISM AND THEIR 3215 02:17:50,360 --> 02:17:55,440 PEERS. 3216 02:17:55,440 --> 02:17:57,680 AND IT'S NOT JUST LIMITED TO 3217 02:17:57,680 --> 02:17:59,120 CHILDREN BUT EXTEND TO 3218 02:17:59,120 --> 02:18:00,800 ADOLESCENTS AND ADULTS AS WELL. 3219 02:18:00,800 --> 02:18:03,200 HERE'S A QUICK OVERVIEW OF A 3220 02:18:03,200 --> 02:18:06,000 STUDY RECENTLY COMPLETED BY ONE 3221 02:18:06,000 --> 02:18:07,600 OF OUR FORMER DOCTORAL STUDENTS 3222 02:18:07,600 --> 02:18:11,440 THAT FOCUSSED ON THE 3223 02:18:11,440 --> 02:18:13,120 INTRODUCTION OF VIDEO TECHNOLOGY 3224 02:18:13,120 --> 02:18:15,320 TO ADOLESCENTS ON THE AUTISM 3225 02:18:15,320 --> 02:18:17,040 SPECTRUM AND THEIR PEERS AND THE 3226 02:18:17,040 --> 02:18:19,280 RESULT OF THAT STUDY SHOWED WHEN 3227 02:18:19,280 --> 02:18:23,120 WE PROVIDED ACCESS TO THE 3228 02:18:23,120 --> 02:18:24,960 TECHNOLOGY AND A VERY BRIEF LESS 3229 02:18:24,960 --> 02:18:26,920 THAN 5 MINUTE TRAINING IN HOW TO 3230 02:18:26,920 --> 02:18:30,640 USE THE TECHNOLOGY, WE SAW 3231 02:18:30,640 --> 02:18:32,400 SIGNIFICANT INCREASES IN SOCIAL 3232 02:18:32,400 --> 02:18:34,240 INTERACTION BETWEEN THE 3233 02:18:34,240 --> 02:18:35,120 INDIVIDUALS WITH AUTISM AND 3234 02:18:35,120 --> 02:18:36,400 THEIR PEERS. 3235 02:18:36,400 --> 02:18:39,280 AND WE SAW HIGH LEVELS OF 3236 02:18:39,280 --> 02:18:40,880 CONSUMER SATISFACTION BOTH FOR 3237 02:18:40,880 --> 02:18:43,320 THOSE ON THE AUTISM SPECTRUM AS 3238 02:18:43,320 --> 02:18:45,400 WELL AS FOR THE PEERS. 3239 02:18:45,400 --> 02:18:48,120 VIDEO VSD TECHNOLOGY DOES NOT 3240 02:18:48,120 --> 02:18:49,720 JUST SUPPORT SOCIAL INTERACTION 3241 02:18:49,720 --> 02:18:51,520 BUT ALSO CAN BE LEVERAGED TO 3242 02:18:51,520 --> 02:18:54,400 INCREASE PARTICIPATION IN A WIDE 3243 02:18:54,400 --> 02:18:56,360 RANGE OF COMMUNITY ACTIVITIES 3244 02:18:56,360 --> 02:19:02,960 AND VOCATIONAL ACTIVITIES. 3245 02:19:02,960 --> 02:19:06,920 WE HAVE ACCESS TO VIDEO MODELS 3246 02:19:06,920 --> 02:19:11,320 FOR STEPS FOR WHAT WOULD BE 3247 02:19:11,320 --> 02:19:14,640 COMPLEX COMMUNITY OR VOCATIONAL 3248 02:19:14,640 --> 02:19:16,400 TASKS AND THE TECHNOLOGY ALLOWS 3249 02:19:16,400 --> 02:19:21,640 US TO EMBED THE COMMUNICATION 3250 02:19:21,640 --> 02:19:23,280 SUPPORTS WITHIN THE VIDEO MODEL 3251 02:19:23,280 --> 02:19:27,000 TO ALLOW ACCESS TO COMMUNICATION 3252 02:19:27,000 --> 02:19:28,440 KEY JUNK TOURS AS REQUIRED 3253 02:19:28,440 --> 02:19:28,800 WITHIN THE TASK. 3254 02:19:28,800 --> 02:19:34,840 WE HAVE A SERIES OF RESEARCH 3255 02:19:34,840 --> 02:19:35,080 STUDIES. 3256 02:19:35,080 --> 02:19:50,360 ONES CONDUCTED ON A LARGER SCALE 3257 02:19:50,360 --> 02:19:52,840 RESEARCH STUDY NOW AND THEY'VE 3258 02:19:52,840 --> 02:19:53,600 SHOWN SUCCESSFUL COMMUNICATION 3259 02:19:53,600 --> 02:19:57,600 IN A WIDE RANGE OF COMMUNITY 3260 02:19:57,600 --> 02:19:58,800 ACTIVITIES INCLUDING GROCERY 3261 02:19:58,800 --> 02:20:02,600 SHOPPING, RIDING PUBLIC TRANSIT 3262 02:20:02,600 --> 02:20:04,800 AS WELL VOCATIONAL ACTIVITIES 3263 02:20:04,800 --> 02:20:06,880 SUCH AS CHECKING IN BOOKS AT THE 3264 02:20:06,880 --> 02:20:08,120 ELEMENTARY SCHOOL LIBRARY OR 3265 02:20:08,120 --> 02:20:14,080 WORKING AT THE LOCAL FOOD BANK. 3266 02:20:14,080 --> 02:20:16,120 ULTIMATELY OUR GOAL IS 3267 02:20:16,120 --> 02:20:17,720 INDEPENDENT GENERATIVE 3268 02:20:17,720 --> 02:20:20,160 COMMUNICATION AND WE KNOW HOW 3269 02:20:20,160 --> 02:20:24,800 INCREDIBLY IMPORTANT LITERACY IS 3270 02:20:24,800 --> 02:20:25,800 TO MEETING THAT GOAL LITERATURE 3271 02:20:25,800 --> 02:20:28,160 SKILLS ARE ESSENTIAL FOR ALL OF 3272 02:20:28,160 --> 02:20:29,880 US FOR PARTICIPATION IN SOCIETY 3273 02:20:29,880 --> 02:20:35,040 AND MORE IMPORTANT FOR 3274 02:20:35,040 --> 02:20:38,120 INDIVIDUALS WHO HAVE LIMITED 3275 02:20:38,120 --> 02:20:39,120 SPEECH BECAUSE IT'S ONLY THROUGH 3276 02:20:39,120 --> 02:20:41,720 LITERACY THEY HAVE ACCESS TO 3277 02:20:41,720 --> 02:20:42,200 INDEPENDENT GENERATIVE 3278 02:20:42,200 --> 02:20:46,800 COMMUNICATION WITHOUT RELYING ON 3279 02:20:46,800 --> 02:20:49,400 OTHERS TO PROVIDE THEM WITH 3280 02:20:49,400 --> 02:20:51,840 ACCESS TO PICTURE SYMBOL TO 3281 02:20:51,840 --> 02:20:52,160 COMMUNICATE. 3282 02:20:52,160 --> 02:20:55,240 IT'S DISTURBING TO SEE MORE THAN 3283 02:20:55,240 --> 02:20:57,400 90% OF INDIVIDUALS WITH COMPLEX 3284 02:20:57,400 --> 02:20:59,760 COMMUNICATION NEEDS ENTER 3285 02:20:59,760 --> 02:21:00,960 ADULTHOOD WITHOUT FUNCTIONAL 3286 02:21:00,960 --> 02:21:01,960 LITERACY SKILLS AND THERE'S 3287 02:21:01,960 --> 02:21:05,480 AWHILE RANGE OF REASONS FOR THIS 3288 02:21:05,480 --> 02:21:08,400 BUT ONE OF THEM IS CURRENT ASC 3289 02:21:08,400 --> 02:21:09,560 TECHNOLOGIES DO NOT SUPPORT THE 3290 02:21:09,560 --> 02:21:14,040 TRANSITION FROM PICTURE SYMBOLS 3291 02:21:14,040 --> 02:21:15,320 TO LITERACY. 3292 02:21:15,320 --> 02:21:17,720 SO ARE WORKING AS WELL ON A 3293 02:21:17,720 --> 02:21:20,240 SERIES OF WHAT WE REFER TO AS 3294 02:21:20,240 --> 02:21:22,640 TRANSITION TO LITERACY FEATURES 3295 02:21:22,640 --> 02:21:26,400 THAT WE ARE EMBEDDED INTO AAC 3296 02:21:26,400 --> 02:21:27,800 TECHNOLOGY TO SUPPORT 3297 02:21:27,800 --> 02:21:29,200 INDIVIDUALS WITH COMPLEX NEEDS 3298 02:21:29,200 --> 02:21:34,040 IN MAKING THE TRANSITION FROM 3299 02:21:34,040 --> 02:21:47,680 PICTURE-BASED SYSTEMS TO 3300 02:21:47,680 --> 02:21:49,800 ORTHOGRAPHY SYMBOL AND WE KNOW 3301 02:21:49,800 --> 02:21:52,000 FROM THE PROCESSING LITERATURE 3302 02:21:52,000 --> 02:21:55,040 THAT MOTION IS AN INCREDIBLY 3303 02:21:55,040 --> 02:21:55,640 POWERFUL ATTRACTER OF VISUAL 3304 02:21:55,640 --> 02:22:06,880 ATTENTION. 3305 02:22:06,880 --> 02:22:09,320 AND THIS DRAWS THE DEVELOPMENT 3306 02:22:09,320 --> 02:22:14,400 OF LITERACY SKILLS. 3307 02:22:14,400 --> 02:22:29,320 THE AND THIS SUPPORTS THE 3308 02:22:29,320 --> 02:22:30,000 ORTHOGRAP 3309 02:22:30,000 --> 02:22:31,320 ORTHOGRAPHICAL FEATURE ON THE 3310 02:22:31,320 --> 02:22:34,400 SKILLS OF PARTICIPANTS INCLUDING 3311 02:22:34,400 --> 02:22:43,280 THOSE ON THE AUTISM SPECTRUM. 3312 02:22:43,280 --> 02:22:50,400 AND THE WORK SHOWS 89% OF 3313 02:22:50,400 --> 02:22:52,480 PARTICIPANTS SIMPLY WITH 3314 02:22:52,480 --> 02:22:54,600 EXPOSURE TO THE FEATURE 3315 02:22:54,600 --> 02:22:55,200 DEMONSTRATED SIGNIFICANT 3316 02:22:55,200 --> 02:22:56,080 INCREASES IN THEIR LITERACY 3317 02:22:56,080 --> 02:22:58,560 SKILLS AND THOSE CAN BE 3318 02:22:58,560 --> 02:23:00,920 INCREASED EVEN FURTHER WHEN 3319 02:23:00,920 --> 02:23:02,720 PAIRED WITH APPROPRIATE AND 3320 02:23:02,720 --> 02:23:03,240 EFFECTIVE INSTRUCTION AND 3321 02:23:03,240 --> 02:23:08,160 LITERACY SKILLS. 3322 02:23:08,160 --> 02:23:10,240 I FOCUS PRIMARILY ON ASSISTIVE 3323 02:23:10,240 --> 02:23:14,400 TECHNOLOGIES TO SUPPORT 3324 02:23:14,400 --> 02:23:17,160 INDIVIDUALS WHO HAVE COMPLEX 3325 02:23:17,160 --> 02:23:18,200 COMMUNICATION NEEDS BUT I ALSO 3326 02:23:18,200 --> 02:23:20,120 WANTED TO TALK ABOUT THE NEED 3327 02:23:20,120 --> 02:23:25,840 FOR TECHNOLOGY SUPPORTS FOR 3328 02:23:25,840 --> 02:23:26,840 COMMUNICATION PARTNERS MANY 3329 02:23:26,840 --> 02:23:28,200 COMMUNICATION PARTNERS ARE NOT 3330 02:23:28,200 --> 02:23:30,280 TRAINED IN AAC OR AUTISM AND 3331 02:23:30,280 --> 02:23:31,360 MANY INDIVIDUALS ON THE AUTISM 3332 02:23:31,360 --> 02:23:34,720 SPECTRUM WILL TELL YOU THE MOST 3333 02:23:34,720 --> 02:23:37,480 SIGNIFICANT CHALLENGES THEY FACE 3334 02:23:37,480 --> 02:23:40,240 IN THEIR COMMUNICATION COME FROM 3335 02:23:40,240 --> 02:23:42,160 THOSE COMMUNICATION PARTNERS WHO 3336 02:23:42,160 --> 02:23:42,920 PREEMPT THEM FROM OPPORTUNITIES 3337 02:23:42,920 --> 02:23:43,400 TO COMMUNICATE AND TO 3338 02:23:43,400 --> 02:23:50,400 PARTICIPATE. 3339 02:23:50,400 --> 02:23:53,640 WE NEED TO BETTER SUPPORT FAMILY 3340 02:23:53,640 --> 02:23:57,640 MEMBERS AND OTHER PARTNERS IN 3341 02:23:57,640 --> 02:23:58,520 SOCIETY INCLUDING FIRST 3342 02:23:58,520 --> 02:24:00,760 RESPONDERS WHO MAY NOT HAVE THE 3343 02:24:00,760 --> 02:24:03,240 SKILLS TO INTERACT EFFECTIVELY 3344 02:24:03,240 --> 02:24:03,840 WITH INDIVIDUALS WITH MINIMAL 3345 02:24:03,840 --> 02:24:14,400 SPEECH. 3346 02:24:14,400 --> 02:24:17,000 WE'RE DEVELOPING AN APP TO ALLOW 3347 02:24:17,000 --> 02:24:17,600 INDIVIDUALS WITH COMPLEX 3348 02:24:17,600 --> 02:24:19,520 COMMUNICATION NICE AND FAMILIES 3349 02:24:19,520 --> 02:24:22,520 AND SERVICE PROVIDERS TO QUICKLY 3350 02:24:22,520 --> 02:24:24,160 AND EASILY CREATE MOBILE 3351 02:24:24,160 --> 02:24:25,600 TRAININGS FOR COMMUNICATION 3352 02:24:25,600 --> 02:24:26,720 PARTNERS THAT PROVIDE CHECKLISTS 3353 02:24:26,720 --> 02:24:28,880 OF THE STEPS THAT SHOULD BE 3354 02:24:28,880 --> 02:24:30,880 FOLLOWED AS WELL AS VIDEO 3355 02:24:30,880 --> 02:24:34,240 DEMONSTRATIONS OF THOSE STEPS. 3356 02:24:34,240 --> 02:24:37,040 THESE ARE SHORT TRAININGS THAT 3357 02:24:37,040 --> 02:24:39,120 CAN BE DEPLOYED JUST IN TIME AS 3358 02:24:39,120 --> 02:24:39,400 REQUIRED. 3359 02:24:39,400 --> 02:24:47,280 PUSHED TO THE EMT AS THEY'RE 3360 02:24:47,280 --> 02:24:50,160 ARRIVING TO PROVIDE SERVICES. 3361 02:24:50,160 --> 02:24:52,240 I HOPE I'VE GIVEN YOU A TASTE OF 3362 02:24:52,240 --> 02:24:53,400 THE EXCITING ADVANCES IN THE 3363 02:24:53,400 --> 02:24:57,560 AREA OF AAC BUT I WANT TO 3364 02:24:57,560 --> 02:24:58,760 EMPHASIZE FOR YOU WE BARELY 3365 02:24:58,760 --> 02:25:00,000 SCRATCHED THE SURFACE. 3366 02:25:00,000 --> 02:25:03,960 WE HAVE TREMENDOUS WORK LEFT TO 3367 02:25:03,960 --> 02:25:05,800 BE DONE. 3368 02:25:05,800 --> 02:25:07,200 WE DESPERATELY NEED RESEARCH TO 3369 02:25:07,200 --> 02:25:08,440 ADVANCE KNOWLEDGE AND DETERMINE 3370 02:25:08,440 --> 02:25:13,200 WHICH INTERVENTIONS WORK BEST 3371 02:25:13,200 --> 02:25:14,600 FOR WHOM UNDER WHAT CONDITIONS. 3372 02:25:14,600 --> 02:25:16,360 WE NEED DEVELOPMENT TO IMPROVE 3373 02:25:16,360 --> 02:25:18,200 AAC TECHNOLOGIES SO THAT WE HAVE 3374 02:25:18,200 --> 02:25:23,200 A NEW GENERATION OF TOOLS TRULY 3375 02:25:23,200 --> 02:25:25,040 RESEARCH BASED AND DRIVEN BY THE 3376 02:25:25,040 --> 02:25:29,440 NEEDS AND SKILLS OF END USERS. 3377 02:25:29,440 --> 02:25:31,080 WE DESPERATELY NEED TRAINING AND 3378 02:25:31,080 --> 02:25:32,000 DISSEMINATION TO BUILD CAPACITY 3379 02:25:32,000 --> 02:25:35,320 SO THAT WE CAN CLOSE THE GAP 3380 02:25:35,320 --> 02:25:37,800 BETWEEN WHAT WE KNOW IS POSSIBLE 3381 02:25:37,800 --> 02:25:40,080 FROM THE RESEARCH AND WHAT IS 3382 02:25:40,080 --> 02:25:43,320 ACTUALLY HAPPENING IN THE LIVES 3383 02:25:43,320 --> 02:25:44,160 OF MANY INDIVIDUALS ON THE 3384 02:25:44,160 --> 02:25:47,320 AUTISM SPECTRUM AND WE NEED 3385 02:25:47,320 --> 02:25:49,440 SYSTEM CHANGE TO ENSURE EQUAL 3386 02:25:49,440 --> 02:25:51,600 ACCESS TO AAC. 3387 02:25:51,600 --> 02:25:54,320 AT THE END OF THE DAY THE 3388 02:25:54,320 --> 02:25:57,120 SUCCESS OF OUR AAC TECHNOLOGIES 3389 02:25:57,120 --> 02:25:58,400 AND INTERVENTIONS WILL BE BEST 3390 02:25:58,400 --> 02:25:59,800 EVALUATED BY THE EXTENT TO WHICH 3391 02:25:59,800 --> 02:26:02,600 THEY ENHANCE INDEPENDENT 3392 02:26:02,600 --> 02:26:05,160 COMMUNICATION AND PARTICIPATION 3393 02:26:05,160 --> 02:26:08,400 BY THE INDIVIDUALS WHO USE THEM. 3394 02:26:08,400 --> 02:26:10,600 MEANINGFUL PARTICIPATION IN 3395 02:26:10,600 --> 02:26:11,280 VALUED ACTIVITIES OF EVERYDAY 3396 02:26:11,280 --> 02:26:14,840 LIFE. 3397 02:26:14,840 --> 02:26:17,320 THANK YOU SO MUCH I REALLY 3398 02:26:17,320 --> 02:26:18,240 APPRECIATE THE OPPORTUNITY TO 3399 02:26:18,240 --> 02:26:20,360 TALK WITH YOU. 3400 02:26:20,360 --> 02:26:24,360 >> THANK YOU, DR. LIGHT. 3401 02:26:24,360 --> 02:26:26,360 A WONDERFUL CONCLUSION AND 3402 02:26:26,360 --> 02:26:29,520 HOPEFUL VISION OF THE FUTURE. 3403 02:26:29,520 --> 02:26:31,000 IT'S NOW MY PLEASURE TO 3404 02:26:31,000 --> 02:26:31,640 TRANSITION FROM HEARING FROM 3405 02:26:31,640 --> 02:26:34,880 SOME OUTSTANDING RESEARCHERS AT 3406 02:26:34,880 --> 02:26:37,040 THE CUTTING EDGE OF USING 3407 02:26:37,040 --> 02:26:39,840 COMMUNICATIVE SUPPORT FOR 3408 02:26:39,840 --> 02:26:41,920 INDIVIDUALS WITH AUTISM AND TURN 3409 02:26:41,920 --> 02:26:43,240 TO INDIVIDUAL'S LIVED 3410 02:26:43,240 --> 02:26:44,000 EXPERIENCE. 3411 02:26:44,000 --> 02:26:46,160 WE'LL BE HEARING FROM TWO SUCH 3412 02:26:46,160 --> 02:26:46,600 INDIVIDUALS. 3413 02:26:46,600 --> 02:26:51,800 I APOLOGIZE IN ADVANCE WE HAD 3414 02:26:51,800 --> 02:26:55,240 THE THIRD SPEAKER RECEIVING A 3415 02:26:55,240 --> 02:26:56,360 COMMUNICATIVE INTERVENTION BUT 3416 02:26:56,360 --> 02:27:06,920 HAD A LAST-MINUTE SCHEDULING 3417 02:27:06,920 --> 02:27:13,520 CONFLICT AND WE'LL HEAR FROM 3418 02:27:13,520 --> 02:27:15,280 JORDYN ZIMMERMAN AND WAS 3419 02:27:15,280 --> 02:27:20,000 APPOINTED BY PRESIDENT BIDEN TO 3420 02:27:20,000 --> 02:27:23,200 THE PANEL ARE THOSE WITH 3421 02:27:23,200 --> 02:27:28,720 DIFFICULTIES AND WE'LL HEAR FROM 3422 02:27:28,720 --> 02:27:29,120 M 3423 02:27:29,120 --> 02:27:31,480 MS. BENITA SHAW BUT FIRST MS. 3424 02:27:31,480 --> 02:27:31,800 ZIMMERMAN. 3425 02:27:31,800 --> 02:28:18,080 >> HI. 3426 02:28:18,080 --> 02:28:20,960 >> THANK YOU FOR INVITING ME 3427 02:28:20,960 --> 02:28:26,280 I'LL SHARE MY LIVED EXPERIENCE 3428 02:28:26,280 --> 02:28:29,480 AS AN AUTISTIC PERSON AND WILL 3429 02:28:29,480 --> 02:28:30,680 INCLUDE POLICY RECOMMENDATIONS 3430 02:28:30,680 --> 02:28:32,680 FOR THE IACC TO CONSIDER. 3431 02:28:32,680 --> 02:28:35,280 I COMMUNICATE BY TYPING LETTER 3432 02:28:35,280 --> 02:28:41,600 BY LETTER ON AN iPAD WHICH 3433 02:28:41,600 --> 02:28:43,400 SPEAKS MY WORD ALOUD AND IN DAY 3434 02:28:43,400 --> 02:28:45,600 TO DAY INTERACTIONS THERE'S 3435 02:28:45,600 --> 02:28:46,920 PAUSES OF SILENCE AS I 3436 02:28:46,920 --> 02:28:47,640 COMMUNICATE AND WHILE I AM 3437 02:28:47,640 --> 02:28:48,800 EXTREMELY HONORED TO SHARE SOME 3438 02:28:48,800 --> 02:28:51,240 OF MY STORY WITH ALL OF YOU, I 3439 02:28:51,240 --> 02:28:54,640 WANTED TO POINT OUT IN ESTIMATED 3440 02:28:54,640 --> 02:28:57,320 30% TO 40% OF THE MORE THAN 5 3441 02:28:57,320 --> 02:28:59,040 MILLION AUTISTIC PEOPLE LIKE 3442 02:28:59,040 --> 02:29:00,680 MYSELF IN THE UNITED STATES ALSO 3443 02:29:00,680 --> 02:29:03,000 RELY ON COMMUNICATION SUPPORT. 3444 02:29:03,000 --> 02:29:08,680 I THINK IT'S A SHAME AND 3445 02:29:08,680 --> 02:29:10,760 DISSERVICE I'M THE ONLY PERSON 3446 02:29:10,760 --> 02:29:14,760 PRESENTING ON THIS IN A TWO-HOUR 3447 02:29:14,760 --> 02:29:16,360 PRESENTATION AND ONLY ONE 3448 02:29:16,360 --> 02:29:17,800 NON-SPEAKING AUTISTIC PERSON AND 3449 02:29:17,800 --> 02:29:19,680 I CAN ONLY SHARE MY EXPERIENCE 3450 02:29:19,680 --> 02:29:21,800 ALONE AND DO NOT AND CAN I CLAIM 3451 02:29:21,800 --> 02:29:25,360 TO REPRESENT MORE THAN A MILLION 3452 02:29:25,360 --> 02:29:25,680 OTHERS. 3453 02:29:25,680 --> 02:29:27,280 MY FIRST IS THAT THE IACC 3454 02:29:27,280 --> 02:29:28,840 APPOINT MORE NON-SPEAKING 3455 02:29:28,840 --> 02:29:30,680 AUTISTIC MEMBERS TO THE 3456 02:29:30,680 --> 02:29:35,280 COMMITTEE AND SOLICIT THE MORE 3457 02:29:35,280 --> 02:29:36,400 OF THESE USERS. 3458 02:29:36,400 --> 02:29:39,120 I GREW UP IN HUDSON, OHIO 3459 02:29:39,120 --> 02:29:40,360 BETWEEN AKRON AND CLEVELAND. 3460 02:29:40,360 --> 02:29:42,320 MY PARENTS MOVED TO HUDSON FOR 3461 02:29:42,320 --> 02:29:45,360 THE SCHOOLS WHICH ARE CONSIDERED 3462 02:29:45,360 --> 02:29:47,000 TOP NOTCH UNLESS YOU'RE A 3463 02:29:47,000 --> 02:29:49,960 STUDENT WHO NEEDS SERVICES AND 3464 02:29:49,960 --> 02:29:50,200 SUPPORT. 3465 02:29:50,200 --> 02:29:51,680 WHEN MY BROTHER STARTED SCHOOL 3466 02:29:51,680 --> 02:29:52,360 HE FLOURISHED. 3467 02:29:52,360 --> 02:29:54,960 WHEN I BEGAN SCHOOL, MY PARENTS 3468 02:29:54,960 --> 02:29:57,400 HAD A STARTLING WAKE UP CALL 3469 02:29:57,400 --> 02:29:58,400 ABOUT INEQUITY. 3470 02:29:58,400 --> 02:30:00,800 THOUGH THE INDIVIDUALS WITH 3471 02:30:00,800 --> 02:30:02,400 DISABILITIES EDUCATION ACT 3472 02:30:02,400 --> 02:30:04,520 EXPECTS STUDENT STARTING IN THE 3473 02:30:04,520 --> 02:30:05,480 GENERAL EDUCATION CLASSROOM THE 3474 02:30:05,480 --> 02:30:08,400 SCHOOL ASSUMED BECAUSE I 3475 02:30:08,400 --> 02:30:11,120 COULDN'T COMMUNICATE RELIABLY 3476 02:30:11,120 --> 02:30:11,920 WITH SPEECH AND CHALLENGING 3477 02:30:11,920 --> 02:30:13,440 BEHAVIORS IT WASN'T THE PLACE 3478 02:30:13,440 --> 02:30:14,360 FOR ME. 3479 02:30:14,360 --> 02:30:16,960 AS WE KNOW, LEGALLY, I HAD EVERY 3480 02:30:16,960 --> 02:30:20,240 RIGHT TO BE THERE. 3481 02:30:20,240 --> 02:30:21,960 ACCESS TO RELIABLE COMMUNITY 3482 02:30:21,960 --> 02:30:24,280 SHOULD HAVE BEEN BEEN PROVIDED 3483 02:30:24,280 --> 02:30:31,280 TO ME BUT NOT BEEN A 3484 02:30:31,280 --> 02:30:32,200 PREREQUISI 3485 02:30:32,200 --> 02:30:32,560 PREREQUISITE. 3486 02:30:32,560 --> 02:30:34,400 AND SOME OF THE REPETITIVE 3487 02:30:34,400 --> 02:30:38,200 PHRASES LIKE THE PROCESS OF 3488 02:30:38,200 --> 02:30:41,480 PRODUCES WORDS WAS DIFFICULT. 3489 02:30:41,480 --> 02:30:46,520 IT WASN'T I WAS LAZY BUT THE 3490 02:30:46,520 --> 02:30:49,320 SPEECH WAS A MOTOR MOVEMENT AND 3491 02:30:49,320 --> 02:30:50,960 MY BODY HAD TO THINK EXTRA HARD 3492 02:30:50,960 --> 02:30:52,840 ABOUT THE PROCESS TO PRODUCE THE 3493 02:30:52,840 --> 02:30:53,920 WORDS AND EVEN WHEN ABLE TO 3494 02:30:53,920 --> 02:30:56,360 SPEAK THE WORDS I HAD NO WAY TO 3495 02:30:56,360 --> 02:30:59,240 SHARE MY ASPIRATIONS FOR THE 3496 02:30:59,240 --> 02:31:01,280 FUTURE AND HOW I PLANNED TO 3497 02:31:01,280 --> 02:31:02,120 CHANGE THE WORLD AND CHANGES IN 3498 02:31:02,120 --> 02:31:04,040 MY LIFE. 3499 02:31:04,040 --> 02:31:08,560 WHEN I WENT HOME WITH BRUISES 3500 02:31:08,560 --> 02:31:11,080 FROM BEING RESTRAINED MY PARENTS 3501 02:31:11,080 --> 02:31:12,840 RELIED ON THE VERSION OF THE 3502 02:31:12,840 --> 02:31:13,200 SCHOOL. 3503 02:31:13,200 --> 02:31:15,960 I WAS GIVEN ACCESS TO PICTURE 3504 02:31:15,960 --> 02:31:18,880 CARDS TO REQUEST ITEMS BUT THAT 3505 02:31:18,880 --> 02:31:19,600 NEVER WORKED FOR ME. 3506 02:31:19,600 --> 02:31:21,240 AS I PROGRESSED THROUGH SCHOOL 3507 02:31:21,240 --> 02:31:25,600 WITHOUT SUPPORT MY EXPERIENCES 3508 02:31:25,600 --> 02:31:27,280 BECAME MORE AND MORE TRAUMATIZE. 3509 02:31:27,280 --> 02:31:28,800 BY THE TIME I WENT TO HIGH 3510 02:31:28,800 --> 02:31:31,200 SCHOOL I WAS SENT TO MULTIPLE 3511 02:31:31,200 --> 02:31:32,120 ALTERNATIVE SCHOOLS NONE OF 3512 02:31:32,120 --> 02:31:33,360 WHICH COULD SUPPORT ME. 3513 02:31:33,360 --> 02:31:35,880 WITHOUT ACCESS TO THE SUPPORT I 3514 02:31:35,880 --> 02:31:37,600 NEEDED I COMMUNICATED IN THE 3515 02:31:37,600 --> 02:31:39,600 ONLY WAY I COULD, WITH MY BODY 3516 02:31:39,600 --> 02:31:43,320 AND WHAT PEOPLE CALLED 3517 02:31:43,320 --> 02:31:44,040 CHALLENGING BEHAVIORS. 3518 02:31:44,040 --> 02:31:47,240 IN NINTH GRADE I WAS SUSPENDED 3519 02:31:47,240 --> 02:31:49,520 AND RESTRAINED WITH HANDCUFFS 3520 02:31:49,520 --> 02:31:50,880 AND ANOTHER TIME RESTRAINED BY A 3521 02:31:50,880 --> 02:31:54,200 TEACHER AND EXPERIENCED AN ACUTE 3522 02:31:54,200 --> 02:31:57,240 BRAIN INJURY AFTER MY TEACHER 3523 02:31:57,240 --> 02:31:59,240 HIT MY HEAD AGAINST THE LEDGE OF 3524 02:31:59,240 --> 02:32:01,520 A CHALK BOARD HOLDER AND THERE 3525 02:32:01,520 --> 02:32:03,200 WERE TIMES I WAS RESTRAINED DUE 3526 02:32:03,200 --> 02:32:07,400 TO MY LACK OF ACCESS TO AAC. 3527 02:32:07,400 --> 02:32:09,600 NON-SPEAKING AUTISTIC PEOPLE ARE 3528 02:32:09,600 --> 02:32:12,240 ONE OF THE LARGEST GROUPS FACING 3529 02:32:12,240 --> 02:32:12,840 RESTRAIN AS A RESULT OF NOT 3530 02:32:12,840 --> 02:32:15,000 HAVING SUPPORT AND SERVICES WE 3531 02:32:15,000 --> 02:32:15,320 NEED. 3532 02:32:15,320 --> 02:32:17,400 ONE REASON THE IACC MUST 3533 02:32:17,400 --> 02:32:19,320 PRIORITIZE COMMUNICATION SUPPORT 3534 02:32:19,320 --> 02:32:25,600 FOR STUDENTS WHO NEED IT AS 3535 02:32:25,600 --> 02:32:27,320 EARLY AS POSSIBLE AND RESTRICT 3536 02:32:27,320 --> 02:32:31,000 THE USE OF RESTRAINT AND 3537 02:32:31,000 --> 02:32:31,240 SECLUSION. 3538 02:32:31,240 --> 02:32:32,920 WHEN I RETURNED TO MY FOURTH 3539 02:32:32,920 --> 02:32:34,960 YEAR OF HIGH SCHOOL I WAS ONCE 3540 02:32:34,960 --> 02:32:37,560 AGAIN PLACED IN A ROOM BY MYSELF 3541 02:32:37,560 --> 02:32:40,760 WITH AN INTERVENTION SPECIALIST. 3542 02:32:40,760 --> 02:32:42,640 THIS TIME THE TEACHER SPENT TIME 3543 02:32:42,640 --> 02:32:44,400 LOOKING FOR HER NEXT JOB IN 3544 02:32:44,400 --> 02:32:46,440 FRONT OF ME AND QUIT WITH TWO 3545 02:32:46,440 --> 02:32:48,360 DAYS NOTICE. 3546 02:32:48,360 --> 02:32:49,720 IT WAS A SHOCK EVERYONE EXCEPT 3547 02:32:49,720 --> 02:32:50,000 ME. 3548 02:32:50,000 --> 02:32:51,400 THE TEACHER HAD NO STRAINING OR 3549 02:32:51,400 --> 02:32:55,120 SUPPORT ON HOW TO MEET MY NEEDS. 3550 02:32:55,120 --> 02:32:56,720 MY FOURTH RECOMMENDATION IS THE 3551 02:32:56,720 --> 02:32:59,200 IACC PUSH FOR EDUCATORS TO BE 3552 02:32:59,200 --> 02:33:03,160 PROVIDED WITH EXTENSIVE TRAINING 3553 02:33:03,160 --> 02:33:09,720 ON GETTING COMMUNICATION SUPPORT 3554 02:33:09,720 --> 02:33:10,400 AS EARLY AS POSSIBLE. 3555 02:33:10,400 --> 02:33:11,320 THIS IS ON EVERYONE. 3556 02:33:11,320 --> 02:33:12,440 AFTER STAYING HOME AND NOT 3557 02:33:12,440 --> 02:33:14,880 HAVING ACCESS TO INSTRUCTION FOR 3558 02:33:14,880 --> 02:33:17,000 NUMEROUS MONTHS THAT SUMMER I 3559 02:33:17,000 --> 02:33:19,000 RETURNED TO THE HIGH SCHOOL. 3560 02:33:19,000 --> 02:33:23,000 MY CURRICULUM CONSISTS OF BASIC 3561 02:33:23,000 --> 02:33:24,640 ACTIVITIES SUCH AS PUTTING 3562 02:33:24,640 --> 02:33:27,320 TEACHERS' NAME CARDS IN 3563 02:33:27,320 --> 02:33:28,760 ALPHABETICAL ORDER AND WASHING 3564 02:33:28,760 --> 02:33:29,680 AND GOING TO STORES TO PUT 3565 02:33:29,680 --> 02:33:30,760 CLOTHES ON HANGERS. 3566 02:33:30,760 --> 02:33:33,160 I THINK IT WAS THE WAY I MOVED 3567 02:33:33,160 --> 02:33:36,000 THAT LED TEACHERS TO ASSUME I 3568 02:33:36,000 --> 02:33:36,640 COULDN'T UNDERSTAND ANYTHING 3569 02:33:36,640 --> 02:33:38,400 MORE THAN BASIC LANGUAGE. 3570 02:33:38,400 --> 02:33:40,640 AT 18 YEARS OLD I WAS BEING 3571 02:33:40,640 --> 02:33:42,360 ASKED TO TOUCH MY NOSE AND HEAD 3572 02:33:42,360 --> 02:33:45,000 AND GIVEN CANDY FOR COMPLYING. 3573 02:33:45,000 --> 02:33:46,320 EVENTUALLY THE DISTRICT DECIDED 3574 02:33:46,320 --> 02:33:49,200 IT WANTED TO SEND ME TO A 3575 02:33:49,200 --> 02:33:49,880 REHABILITATION PROGRAM. 3576 02:33:49,880 --> 02:33:51,200 MY TEACHER AND ONE OF THE HIGH 3577 02:33:51,200 --> 02:33:55,280 SCHOOL ASSISTANT PRINCIPALS TOOK 3578 02:33:55,280 --> 02:33:56,400 ME TO VISIT WITHOUT FIRST 3579 02:33:56,400 --> 02:33:58,160 INFORMING MY MOM. 3580 02:33:58,160 --> 02:34:00,720 AT THE SUBSEQUENT MEETING WITH 3581 02:34:00,720 --> 02:34:02,240 MY MOM WITH THE OPPORTUNITY THEY 3582 02:34:02,240 --> 02:34:03,240 SHARED HOW I HAD ALREADY BEEN 3583 02:34:03,240 --> 02:34:04,160 THERE AND LOVED IT. 3584 02:34:04,160 --> 02:34:06,720 WHILE I DEEPLY ENJOYED VISITING 3585 02:34:06,720 --> 02:34:08,400 THE ANIMALS FOR THE BRIEF 20 3586 02:34:08,400 --> 02:34:10,000 MINUTES, NO PART OF ME COULD 3587 02:34:10,000 --> 02:34:11,760 ENVISION SPENDING HOURS OF EACH 3588 02:34:11,760 --> 02:34:12,600 DAY IN THAT SPACE. 3589 02:34:12,600 --> 02:34:15,280 WHEN WE DO NOT HAVE ACCESS TO 3590 02:34:15,280 --> 02:34:19,400 EFFECTIVE AND RELIABLE FORMS OF 3591 02:34:19,400 --> 02:34:20,400 COMMUNICATION, PEOPLE IN POWER 3592 02:34:20,400 --> 02:34:23,040 MAKE DESTRUCTIVE DECISION OUR 3593 02:34:23,040 --> 02:34:23,240 LIVES. 3594 02:34:23,240 --> 02:34:24,120 THIS IS WHY MY FOURTH 3595 02:34:24,120 --> 02:34:24,920 RECOMMENDATION IS SO IMPORTANT. 3596 02:34:24,920 --> 02:34:27,320 IN HIGH SCHOOL, I RECEIVED AN 3597 02:34:27,320 --> 02:34:30,600 I.Q. SCORE OF 61. 3598 02:34:30,600 --> 02:34:31,480 THE ASSUMPTIONS UNDERLYING MY 3599 02:34:31,480 --> 02:34:35,000 SCORE HAD A NEGATIVE IMPACT ON 3600 02:34:35,000 --> 02:34:37,280 PEOPLE'S PERCEPTIONS OF ME AS 3601 02:34:37,280 --> 02:34:39,320 WELL AS MY PERCEPTION OF MYSELF. 3602 02:34:39,320 --> 02:34:40,840 PROFESSIONALS TALKED AROUND ME 3603 02:34:40,840 --> 02:34:42,160 THINKING I DIDN'T UNDERSTAND 3604 02:34:42,160 --> 02:34:44,000 WHILE THERE IS NOTHING SHAMEFUL 3605 02:34:44,000 --> 02:34:46,000 ABOUT LOW I.Q. SCORE THEY 3606 02:34:46,000 --> 02:34:47,200 ULTIMATELY WERE CONVEYING TO ME 3607 02:34:47,200 --> 02:34:48,800 I WAS A FAILURE IN SOCIETY 3608 02:34:48,800 --> 02:34:50,400 BECAUSE OF MY POOR MOTOR SKILLS 3609 02:34:50,400 --> 02:34:52,720 AND APRAXIA. 3610 02:34:52,720 --> 02:34:54,800 MY FIFTH RECOMMENDATION IS THAT 3611 02:34:54,800 --> 02:34:57,320 THE IACC PRIORITIZE POLICIES 3612 02:34:57,320 --> 02:34:59,280 THAT MAKE SURE I.Q. TESTS ARE 3613 02:34:59,280 --> 02:35:01,080 NOT GIVEN FOR PEOPLE WHO DO NOT 3614 02:35:01,080 --> 02:35:02,600 HAVE ACCESS TO RELIABLE OR 3615 02:35:02,600 --> 02:35:03,360 EFFECTIVE COMMUNICATION. 3616 02:35:03,360 --> 02:35:04,640 WE MUST CONSTANTLY REMEMBER 3617 02:35:04,640 --> 02:35:07,760 SPEECH IS A MOTOR FUNCTION NOT A 3618 02:35:07,760 --> 02:35:08,760 COGNITIVE FUNCTION. 3619 02:35:08,760 --> 02:35:11,000 A FEW MONTHS BEFORE MY 19th 3620 02:35:11,000 --> 02:35:13,400 BIRTHDAY THERE WAS ANOTHER 3621 02:35:13,400 --> 02:35:14,240 RESTRAINED INCIDENT THE DISTRICT 3622 02:35:14,240 --> 02:35:16,000 BLAMED ON ME AND TRIED TO EXPEL 3623 02:35:16,000 --> 02:35:16,920 ME FOR. 3624 02:35:16,920 --> 02:35:18,880 MY MOM GOT IN TOUCH WITH 3625 02:35:18,880 --> 02:35:20,040 DISABILITY RIGHTS OHIO. 3626 02:35:20,040 --> 02:35:22,760 IT WAS DURING THIS TIME AT HOME 3627 02:35:22,760 --> 02:35:26,200 DUE TO THE LAWYERS' INTERVENTION 3628 02:35:26,200 --> 02:35:27,720 I BEGAN UTILIZING AN iPAD TO 3629 02:35:27,720 --> 02:35:29,000 HELP ME COMMUNICATE. 3630 02:35:29,000 --> 02:35:30,760 HAVING MORE RELIABLE 3631 02:35:30,760 --> 02:35:35,320 COMMUNICATION ACCESS VIA AN iPAD 3632 02:35:35,320 --> 02:35:38,320 DIDN'T IMMEDIATELY DECREASE MY 3633 02:35:38,320 --> 02:35:39,320 FRUSTRATION BUT LED TO THE STAFF 3634 02:35:39,320 --> 02:35:40,840 DECIDING TO RESTRAIN ME. 3635 02:35:40,840 --> 02:35:43,360 IT WAS ONE SUPPORT I NEEDED AND 3636 02:35:43,360 --> 02:35:45,000 A SUPPORT THAT WOULD TAKE TIME 3637 02:35:45,000 --> 02:35:46,520 FOR KNOW LEARN TO USE. 3638 02:35:46,520 --> 02:35:49,000 UNFORTUNATELY, RATHER THAN 3639 02:35:49,000 --> 02:35:53,640 SUPPORTING MY USE MY SPECIAL 3640 02:35:53,640 --> 02:35:56,160 EDUCATION TEACHER USED MY iPAD 3641 02:35:56,160 --> 02:35:59,120 TO BULLY AND MAKE FUN OF ME AND 3642 02:35:59,120 --> 02:36:04,320 MADE JOKES ABOUT MY APPEARANCE 3643 02:36:04,320 --> 02:36:07,600 AND MY MOM FOUND A SCHOOL 3644 02:36:07,600 --> 02:36:08,640 SERVING AUTISTIC STUDENT. 3645 02:36:08,640 --> 02:36:11,800 IT WAS NOT RADICALLY INCLUSIVE 3646 02:36:11,800 --> 02:36:16,400 AND IT WAS A LONG DRIVE EACH 3647 02:36:16,400 --> 02:36:16,680 DAY. 3648 02:36:16,680 --> 02:36:18,560 HOWEVER, THEY HELPED ME IN THE 3649 02:36:18,560 --> 02:36:18,800 MOMENT. 3650 02:36:18,800 --> 02:36:20,680 MY LOCAL PUBLIC HIGH SCHOOL WAS 3651 02:36:20,680 --> 02:36:21,600 STEADFAST IN SAYING THEY COULD 3652 02:36:21,600 --> 02:36:23,280 NOT SUPPORT MY NEEDS FULL TIME. 3653 02:36:23,280 --> 02:36:29,120 AFTER SPENDING A YEAR AT A 3654 02:36:29,120 --> 02:36:31,240 SCHOOL I SLOWLY REALIZED MEN 3655 02:36:31,240 --> 02:36:32,360 HIGH SCHOOL THOUGH AN HOUR DRIVE 3656 02:36:32,360 --> 02:36:36,440 EACH WAY WAS MY BEST CHANCE. 3657 02:36:36,440 --> 02:36:39,200 EVEN THE LEADING HUDSON HIGH 3658 02:36:39,200 --> 02:36:40,760 SCHOOL WAS IN A WAY MY CHOICE I 3659 02:36:40,760 --> 02:36:48,720 FELT ANGER AND DEVASTATION WHEN 3660 02:36:48,720 --> 02:36:54,880 I SAW THE SEGREGATION AND IT WAS 3661 02:36:54,880 --> 02:36:55,600 ALL I KNEW. 3662 02:36:55,600 --> 02:36:57,520 I WASN'T USED TO EATING IN THE 3663 02:36:57,520 --> 02:36:59,120 CAFETERIA OR BEING IN CLASSES 3664 02:36:59,120 --> 02:37:01,120 WITH 20 OTHER STUDENTS. 3665 02:37:01,120 --> 02:37:02,880 FOR THE FIRST COUPLE MONTHS OF 3666 02:37:02,880 --> 02:37:08,040 SCHOOL I SCREAMED OFTEN AND 3667 02:37:08,040 --> 02:37:11,280 BANGED MY HEAD AND RAN OUT AND I 3668 02:37:11,280 --> 02:37:13,080 DON'T THINK MY TEAM GRASPED MY 3669 02:37:13,080 --> 02:37:14,000 EXPERIENCE AND I NEEDED PARTNERS 3670 02:37:14,000 --> 02:37:16,560 TO SUPPORT ME TO GO TO MY iPAD 3671 02:37:16,560 --> 02:37:19,000 WHEN I WAS FEELING A RANGE OF 3672 02:37:19,000 --> 02:37:19,280 EMOTIONS. 3673 02:37:19,280 --> 02:37:22,640 I TOOK OVER A YEARS OF INTENSE 3674 02:37:22,640 --> 02:37:25,480 SUPPORT TO BECOME FLUENT TO BE 3675 02:37:25,480 --> 02:37:27,000 EFFECTIVELY UNDERSTOOD BY 3676 02:37:27,000 --> 02:37:27,240 OTHERS. 3677 02:37:27,240 --> 02:37:27,880 WITH COLLABORATION AND 3678 02:37:27,880 --> 02:37:29,400 COMMUNICATION AS THE KEYS I 3679 02:37:29,400 --> 02:37:31,000 STARTED TO DEVELOP RELATIONSHIPS 3680 02:37:31,000 --> 02:37:35,240 AND I SLOWLY GOT USED TO THE NEW 3681 02:37:35,240 --> 02:37:36,000 ENVIRONMENT. 3682 02:37:36,000 --> 02:37:38,240 I BEGAN ADJUSTING AND FOR THE 3683 02:37:38,240 --> 02:37:40,120 FIRST TIME WAS IMMERSED IN 3684 02:37:40,120 --> 02:37:43,120 COMMUNITY LEARNING REAL 3685 02:37:43,120 --> 02:37:43,880 ACADEMICS INCLUDING MATH, 3686 02:37:43,880 --> 02:37:46,120 ENGLISH, BUSINESS, LAW AND 3687 02:37:46,120 --> 02:37:47,200 OTHERS. 3688 02:37:47,200 --> 02:37:48,680 AS TIME WENT ON I JOINED 3689 02:37:48,680 --> 02:37:50,360 CHEERLEADING AND PARTICIPATED IN 3690 02:37:50,360 --> 02:37:52,040 CLUBS AND EVEN JOINED THE SPEECH 3691 02:37:52,040 --> 02:37:54,520 AND DEBATE TEAM. 3692 02:37:54,520 --> 02:37:56,920 I WAS MEANINGFULLY INCLUDED AND 3693 02:37:56,920 --> 02:38:01,480 FELT I BELONGED BUT MY AC SIS 3694 02:38:01,480 --> 02:38:03,160 SAYS TO A FREE AND APPROPRIATE 3695 02:38:03,160 --> 02:38:05,120 EDUCATION SHOULDN'T HAVE ONLY 3696 02:38:05,120 --> 02:38:11,280 BEEN AN HOUR AWAY OR STARTED AT 3697 02:38:11,280 --> 02:38:11,440 19. 3698 02:38:11,440 --> 02:38:13,440 I GRADUATED HIGH SCHOOL AND 3699 02:38:13,440 --> 02:38:14,600 BEGAN MY COLLEGE UNIVERSITY AT 3700 02:38:14,600 --> 02:38:16,960 OHIO UNIVERSITY. 3701 02:38:16,960 --> 02:38:19,040 I ENJOYED COLLEGE BUT PEOPLE 3702 02:38:19,040 --> 02:38:23,080 MADE HARMFUL ASSUMPTIONS. 3703 02:38:23,080 --> 02:38:27,280 MY ACTIONS WERE CONSTANTLY 3704 02:38:27,280 --> 02:38:30,280 PATHOLOGIZED AND THE UNIVERSITY 3705 02:38:30,280 --> 02:38:32,560 PRESUMED I'D BE UNSUCCESSFUL AND 3706 02:38:32,560 --> 02:38:34,600 SET HIGH STANDARDS IN ATTEMPT TO 3707 02:38:34,600 --> 02:38:40,560 PUSH ME OUT AND A PERSEVERED AND 3708 02:38:40,560 --> 02:38:45,520 GRADUATED AND IN AUGUST 2020 I 3709 02:38:45,520 --> 02:38:47,240 ENROLLED IN A MASTER'S PROGRAM 3710 02:38:47,240 --> 02:38:50,240 AT BOSTON COLLEGE AND I TAUGHT 3711 02:38:50,240 --> 02:38:51,080 HIGH SCHOOLERS IN A SEPARATE 3712 02:38:51,080 --> 02:38:52,920 ENVIRONMENT WITHIN THE BOSTON 3713 02:38:52,920 --> 02:38:53,400 PUBLIC SCHOOLS. 3714 02:38:53,400 --> 02:38:55,600 IT WAS CHALLENGING TO BE ON THE 3715 02:38:55,600 --> 02:38:57,680 OTHER SIDE TO SEE STUDENTS WHO 3716 02:38:57,680 --> 02:38:59,640 COULD BE MEANINGFULLY INCLUDED 3717 02:38:59,640 --> 02:39:02,320 IF PROVIDED WITH APPROPRIATE 3718 02:39:02,320 --> 02:39:06,000 SERVICE AND SUPPORT BUT STUCK IN 3719 02:39:06,000 --> 02:39:08,120 THE SAME SYSTEM I FOUND MYSELF 3720 02:39:08,120 --> 02:39:08,400 IN. 3721 02:39:08,400 --> 02:39:10,400 IN MANY CASE STUDENTS IN MY 3722 02:39:10,400 --> 02:39:12,560 CLASS BETWEEN AGES 13 AND 15 3723 02:39:12,560 --> 02:39:14,400 WERE STILL TRYING TO GAIN 3724 02:39:14,400 --> 02:39:17,040 MEANINGFUL ACCESS TO EFFECTIVE 3725 02:39:17,040 --> 02:39:17,480 AAC. 3726 02:39:17,480 --> 02:39:23,080 IN DECEMBER I GRADUATED WITH MY 3727 02:39:23,080 --> 02:39:25,880 MASTER'S IN EDUCATION AND HAVE 3728 02:39:25,880 --> 02:39:27,120 WORKED AS DIRECTOR OF 3729 02:39:27,120 --> 02:39:28,880 PROFESSIONAL DEVELOPMENT HELPING 3730 02:39:28,880 --> 02:39:30,920 COMMUNITY LEADERS THINK 3731 02:39:30,920 --> 02:39:32,000 CRITICALLY ABOUT DIVERSITY AND 3732 02:39:32,000 --> 02:39:33,520 THE HUMAN WORTH OF ALL PEOPLE. 3733 02:39:33,520 --> 02:39:35,280 IN THE LAST YEAR I HAVE BEEN 3734 02:39:35,280 --> 02:39:36,880 FEATURED IN A DOCUMENTARY CALLED 3735 02:39:36,880 --> 02:39:39,720 THIS IS NOT ABOUT ME AND I 3736 02:39:39,720 --> 02:39:42,520 CO-CREATED AND WAS FEATURED IN 3737 02:39:42,520 --> 02:39:45,320 LISTEN, A SHORT FILM ABOUT 3738 02:39:45,320 --> 02:39:45,960 NON-SPEAKING AUTISTIC PEOPLE. 3739 02:39:45,960 --> 02:39:47,240 I SERVE ON THE BOARD OF 3740 02:39:47,240 --> 02:39:48,120 DIRECTORS OF COMMUNICATION FIRST 3741 02:39:48,120 --> 02:39:51,200 AND HAVE KEY NOTED SEVERAL 3742 02:39:51,200 --> 02:39:51,480 CONFERENCES. 3743 02:39:51,480 --> 02:39:53,560 LAST MONTH I WAS APPOINTED BY 3744 02:39:53,560 --> 02:39:55,240 PRESIDENT BIDEN TO THE 3745 02:39:55,240 --> 02:39:57,680 PRESIDENT'S COMMITTEE FOR PEOPLE 3746 02:39:57,680 --> 02:40:01,000 WITH INTELLECTUAL DISABILITIES. 3747 02:40:01,000 --> 02:40:03,040 THIS WOULDN'T BE POSSIBLE IF I 3748 02:40:03,040 --> 02:40:06,800 WAS NOT GIVEN ACCESS TO ROBUST 3749 02:40:06,800 --> 02:40:07,120 AAC. 3750 02:40:07,120 --> 02:40:09,800 MY VOICE STILL IS OFTEN 3751 02:40:09,800 --> 02:40:13,000 QUESTIONED OR DISREGARDED BY 3752 02:40:13,000 --> 02:40:13,360 PROFESSIONALS. 3753 02:40:13,360 --> 02:40:15,320 LAST SUMMER BEFORE A MINOR 3754 02:40:15,320 --> 02:40:19,200 PROCEDURE I SHARED I HAD AN 3755 02:40:19,200 --> 02:40:22,480 ALLERGY WITH THE ANESTHES 3756 02:40:22,480 --> 02:40:24,720 ANESTHESIOLOGIST AND I WAS 3757 02:40:24,720 --> 02:40:28,600 IGNORED AND THIS IS WHY ACCESS 3758 02:40:28,600 --> 02:40:31,280 TO AAC IS NOT ENOUGH. 3759 02:40:31,280 --> 02:40:38,280 ANY SIXTH RECOMMENDATION IS THE 3760 02:40:38,280 --> 02:40:40,640 IACC PUSH FOR AND ADVOCATE TO 3761 02:40:40,640 --> 02:40:42,440 COMMUNICATE ON THE WAY BEST FOR 3762 02:40:42,440 --> 02:40:42,720 OURSELVES. 3763 02:40:42,720 --> 02:40:48,000 WE'RE THE EXPERT ON OURSELVES AS 3764 02:40:48,000 --> 02:40:50,600 THE IACC WORKS ON 3765 02:40:50,600 --> 02:40:52,720 RECOMMENDATIONS, I URGE IT TO 3766 02:40:52,720 --> 02:40:55,000 INCLUDE MORE MAUN-SPEAKING 3767 02:40:55,000 --> 02:40:59,840 AUTISTIC PEOPLE IN PLANNING 3768 02:40:59,840 --> 02:41:00,200 REPRESENTATION. 3769 02:41:00,200 --> 02:41:05,280 EDUCATION MATTERS IN MEDICINE 3770 02:41:05,280 --> 02:41:08,720 AND FUNDING. 3771 02:41:08,720 --> 02:41:18,400 AND AAC USERS SHOULD BE USED FOR 3772 02:41:18,400 --> 02:41:20,320 INFLUENCE IN RESEARCH AND THE 3773 02:41:20,320 --> 02:41:23,760 IACC HAS A RESPONSIBILITY TO FIX 3774 02:41:23,760 --> 02:41:24,280 THAT. 3775 02:41:24,280 --> 02:41:26,120 AS PRESIDENT BIDEN PROCLAIMED ON 3776 02:41:26,120 --> 02:41:27,720 WORLD AUTISM DAY WE NEED TO 3777 02:41:27,720 --> 02:41:28,440 INCORPORATE THE LIVED 3778 02:41:28,440 --> 02:41:31,280 EXPERIENCES OF INDIVIDUALS WITH 3779 02:41:31,280 --> 02:41:33,280 AUTISM INTO THEIR RESEARCH. 3780 02:41:33,280 --> 02:41:35,960 THE IACC MUST DO A BETTER JOB 3781 02:41:35,960 --> 02:41:38,400 ENSURING THOSE WHO NEED IT ARE 3782 02:41:38,400 --> 02:41:40,080 GIVENING ACCESS, TRAINING AND 3783 02:41:40,080 --> 02:41:44,400 SUPPORT TO USE ROBUST AAC THAT 3784 02:41:44,400 --> 02:41:45,360 WORKS FOR US AS EARLY AS 3785 02:41:45,360 --> 02:41:45,600 POSSIBLE. 3786 02:41:45,600 --> 02:41:47,280 WITHOUT IT WE CANNOT FULLY 3787 02:41:47,280 --> 02:41:49,600 PARTICIPATE IN OUR COMMUNITIES 3788 02:41:49,600 --> 02:41:51,960 OR LEAD LIVES OF DIGNITY AND 3789 02:41:51,960 --> 02:41:53,200 RESPECT AS PRESIDENT BIDEN HAS 3790 02:41:53,200 --> 02:41:54,320 CALLED FOR. 3791 02:41:54,320 --> 02:41:56,400 TOO MANY PEOPLE LIKE ME ARE 3792 02:41:56,400 --> 02:41:58,280 WRITTEN OFF AND SUBJECTED TO 3793 02:41:58,280 --> 02:42:01,280 LIVE IN OPPRESSION AND 3794 02:42:01,280 --> 02:42:01,600 SEGREGATION. 3795 02:42:01,600 --> 02:42:03,520 TOO MANY CAREGIVERS GAVE UP TOO 3796 02:42:03,520 --> 02:42:05,360 QUICKLY OR ASSUMED WE CANNOT 3797 02:42:05,360 --> 02:42:07,840 LEARN TO USE LANGUAGE WHEN WE 3798 02:42:07,840 --> 02:42:09,600 FAIL TO USE SPOKEN WORDS OR 3799 02:42:09,600 --> 02:42:11,320 PICTURE CARDS IN EXPECTED WAYS. 3800 02:42:11,320 --> 02:42:13,000 IN A SYSTEM DESIGNED TO FAIL 3801 02:42:13,000 --> 02:42:16,000 INDIVIDUALS LIKE ME I COUNT 3802 02:42:16,000 --> 02:42:17,480 MYSELF LUCKY. 3803 02:42:17,480 --> 02:42:18,000 HOWEVER, PEOPLE LIKE ME 3804 02:42:18,000 --> 02:42:19,600 SHOULDN'T HAVE TO RELY ON LUCK 3805 02:42:19,600 --> 02:42:21,200 OR CHANCE TO BE SEEN AS WORTHY 3806 02:42:21,200 --> 02:42:24,600 OR TO HAVE ACCESS TO RELIABLE 3807 02:42:24,600 --> 02:42:25,640 COMMUNICATION OR INCLUSIVE 3808 02:42:25,640 --> 02:42:26,200 EDUCATION. 3809 02:42:26,200 --> 02:42:28,760 WHILE MY STORY IS ONE STORY, 3810 02:42:28,760 --> 02:42:30,480 THIS IS NOT ABOUT ME. 3811 02:42:30,480 --> 02:42:32,400 AS HORRIFYING AS MY LIVED 3812 02:42:32,400 --> 02:42:34,680 EXPERIENCE MAY BE I'M A 3813 02:42:34,680 --> 02:42:35,280 RELATIVELY PRIVILEGED WHITE 3814 02:42:35,280 --> 02:42:38,040 WOMAN AND WHILE MY STORY SHOULD 3815 02:42:38,040 --> 02:42:40,200 NOT BE THE STANDARD, IT SHOULD 3816 02:42:40,200 --> 02:42:44,800 NOT BE ASSUMED TO BE UNUSUAL. 3817 02:42:44,800 --> 02:42:47,760 30% TO 40% OF AUTISTIC FOLKS 3818 02:42:47,760 --> 02:42:50,400 NEED AAC BUT ESPECIALLY 3819 02:42:50,400 --> 02:42:52,600 AUTISTICS OF COLOR ARE STILL 3820 02:42:52,600 --> 02:42:53,520 DENIED ACCESS TO COMMUNICATION 3821 02:42:53,520 --> 02:42:55,480 TOOLS AND SUPPORT EFFECTIVE FOR 3822 02:42:55,480 --> 02:42:55,640 US. 3823 02:42:55,640 --> 02:42:58,880 EVERY DAY PEOPLE LIKE ME ARE 3824 02:42:58,880 --> 02:43:00,000 BEING DEPRIVED OF CONTRIBUTING 3825 02:43:00,000 --> 02:43:01,360 TO OUR COMMUNITIES AND THEY'RE 3826 02:43:01,360 --> 02:43:04,800 BEING DEPRIVED OF KNOWING OUR 3827 02:43:04,800 --> 02:43:05,200 HUMANITY. 3828 02:43:05,200 --> 02:43:07,200 THE ONLY THING UNIQUE ABOUT MY 3829 02:43:07,200 --> 02:43:09,680 SITUATION IS THE RIGHT PEOPLE 3830 02:43:09,680 --> 02:43:14,000 HAPPEN TO STEP IN TO PUSH FOR 3831 02:43:14,000 --> 02:43:15,000 THE TRAINING AND SUPPORT THAT 3832 02:43:15,000 --> 02:43:16,840 WORKED FOR ME. 3833 02:43:16,840 --> 02:43:18,200 WE HAVE TO CHANGE THIS. 3834 02:43:18,200 --> 02:43:19,520 I ENCOURAGE THE IACC TO LEAD THE 3835 02:43:19,520 --> 02:43:20,440 WAY. 3836 02:43:20,440 --> 02:43:21,200 THANK YOU. 3837 02:43:21,200 --> 02:43:23,520 I'M HAPPY TO TAKE ANY QUESTIONS 3838 02:43:23,520 --> 02:43:40,760 YOU MAY HAVE. 3839 02:43:40,760 --> 02:43:41,560 >> THANK YOU. 3840 02:43:41,560 --> 02:43:44,800 I WANT TO INTRODUCE OUR FINAL 3841 02:43:44,800 --> 02:43:48,280 SPEAKER MS. BENITA SHAW. 3842 02:43:48,280 --> 02:43:50,840 A PROUD MOTHER OF TWO YOUNG MEN 3843 02:43:50,840 --> 02:43:53,560 ONE ON THE AUTISM SPECTRUM AND 3844 02:43:53,560 --> 02:43:55,160 WORKS AT THE U.C. DAVIS MIND 3845 02:43:55,160 --> 02:43:56,040 INSTITUTE IN THE RESOURCE CENTER 3846 02:43:56,040 --> 02:44:00,400 AND A FACILITATOR FOR THE 3847 02:44:00,400 --> 02:44:02,440 SUPPORT GROUP AT THE MIND. 3848 02:44:02,440 --> 02:44:07,240 MS. SHAW. 3849 02:44:07,240 --> 02:44:08,400 >> GOOD AFTERNOON, EVERYONE. 3850 02:44:08,400 --> 02:44:14,000 YOU HAVE TO BEAR WITH ME. 3851 02:44:14,000 --> 02:44:18,400 MS. ZIMMERMAN, MY HATS OFF TO 3852 02:44:18,400 --> 02:44:25,800 YOU I'M TRYING TO COMPOSE MYSELF 3853 02:44:25,800 --> 02:44:28,200 BECAUSE CONTINUE TO DO WHAT YOU 3854 02:44:28,200 --> 02:44:29,200 DO BECAUSE YOU'RE DOING IT FOR 3855 02:44:29,200 --> 02:44:33,920 OTHERS LIKE MY SON AND THANK 3856 02:44:33,920 --> 02:44:34,080 YOU. 3857 02:44:34,080 --> 02:44:35,800 I'LL PROCEED TO -- EXCUSE MY 3858 02:44:35,800 --> 02:44:36,800 SCRATCHY VOICE BECAUSE LISTENING 3859 02:44:36,800 --> 02:44:41,720 TO HER I'M IN TEARS AND MAKES ME 3860 02:44:41,720 --> 02:44:42,800 REALIZE HOW MUCH HOPE I STILL 3861 02:44:42,800 --> 02:44:43,920 HAVE FOR ANY INDIVIDUAL. 3862 02:44:43,920 --> 02:44:47,680 AS YOU STATED, I DO WORK AT THE 3863 02:44:47,680 --> 02:44:49,800 MIND INSTITUTE AND I'M A SINGLE 3864 02:44:49,800 --> 02:44:51,280 MOM OF TWO BOYS. 3865 02:44:51,280 --> 02:44:58,800 MY YOUNGEST IS NOW 20 AND HE WAS 3866 02:44:58,800 --> 02:45:01,120 DIAGNOSED WITH AUTISM AT 2 1/2 3867 02:45:01,120 --> 02:45:03,360 AND NON-SPEAKING, MINIMAL WORDS 3868 02:45:03,360 --> 02:45:05,000 AND A LISTEN TO THE RESEARCHERS 3869 02:45:05,000 --> 02:45:08,440 TODAY AND MS. ZIMMERMAN AND I 3870 02:45:08,440 --> 02:45:10,040 REALIZE THAT BECAUSE OF WHO HE 3871 02:45:10,040 --> 02:45:12,160 IS AND WHAT HE LOOKS LIKE, HE 3872 02:45:12,160 --> 02:45:14,320 WAS NOT ABLE TO GET THE PROPER 3873 02:45:14,320 --> 02:45:16,000 EDUCATION HE NEEDED TO. 3874 02:45:16,000 --> 02:45:18,280 HE STARTED OFF WITH A TEXTBOOK 3875 02:45:18,280 --> 02:45:23,320 WHEN HE WAS YOUNG BECAUSE OF 3876 02:45:23,320 --> 02:45:24,880 INTEGRATION WE HAD GREAT 3877 02:45:24,880 --> 02:45:29,160 CHALLENGES BECAUSE OF HIS 3878 02:45:29,160 --> 02:45:29,480 BEHAVIOR. 3879 02:45:29,480 --> 02:45:30,640 IT TOOK A LOT IN ORDER FOR HIM 3880 02:45:30,640 --> 02:45:31,320 TO BE TAUGHT. 3881 02:45:31,320 --> 02:45:35,000 WE DID THAT FOR A WHILE AND I 3882 02:45:35,000 --> 02:45:37,640 DECIDED WHEN HE FIRST STARTED HE 3883 02:45:37,640 --> 02:45:40,160 WAS IN A NON-PUBLIC SCHOOL AND 3884 02:45:40,160 --> 02:45:41,200 THOUGHT THE BEST THING TO DO WAS 3885 02:45:41,200 --> 02:45:43,920 TO INTEGRATE HIM. 3886 02:45:43,920 --> 02:45:46,160 IT'S HARD WHEN PEOPLE GIVE YOU 3887 02:45:46,160 --> 02:45:47,280 NEGATIVE FEEDBACK WHEN YOU'RE 3888 02:45:47,280 --> 02:45:52,040 TRYING TO PUSH AND INCLUDE YOUR 3889 02:45:52,040 --> 02:45:55,280 CHILD FOR APPROPRIATE EDUCATION 3890 02:45:55,280 --> 02:45:59,280 ANY AVERAGE MOTHER WOULD WANT. 3891 02:45:59,280 --> 02:46:01,200 IN TRANSITIONING HIM TO A PUBLIC 3892 02:46:01,200 --> 02:46:04,280 SCHOOL SYSTEM AND WE LEFT THE 3893 02:46:04,280 --> 02:46:05,440 NON-PUBLIC SCHOOL SYSTEM IT 3894 02:46:05,440 --> 02:46:07,280 WOULDN'T WORK FOR HIM BECAUSE HE 3895 02:46:07,280 --> 02:46:08,880 HAD TOO MANY BEHAVIORS AND 3896 02:46:08,880 --> 02:46:09,440 CHALLENGES. 3897 02:46:09,440 --> 02:46:10,840 THAT INITIALLY STARTED MY 3898 02:46:10,840 --> 02:46:12,320 ADVOCACY FOR MY SON, 3899 02:46:12,320 --> 02:46:15,160 CHRISTOPHER, TO FIGHT FOR HIM TO 3900 02:46:15,160 --> 02:46:17,040 HAVE WHATEVER EVERYONE ELSE HAS. 3901 02:46:17,040 --> 02:46:19,280 YET MY ELDER IS QUITE GIFTED AND 3902 02:46:19,280 --> 02:46:21,400 THERE WAS NO ISSUE PROVIDING FOR 3903 02:46:21,400 --> 02:46:24,760 THE THINGS HE NEEDED IT'S BEEN A 3904 02:46:24,760 --> 02:46:26,200 FIGHT FOR THE PAST 15 YEARS TO 3905 02:46:26,200 --> 02:46:31,360 ALLOW MY SON TO BE INCLUDED INTO 3906 02:46:31,360 --> 02:46:33,840 THE EDUCATIONAL SYSTEM. 3907 02:46:33,840 --> 02:46:36,440 HE HAD SPEECH AND OCCUPATIONAL 3908 02:46:36,440 --> 02:46:38,200 THERAPY AND MUSICAL THERAPY. 3909 02:46:38,200 --> 02:46:40,320 I BELIEVE THE YOUNG MAN IS 3910 02:46:40,320 --> 02:46:42,200 BRILLIANT IN HIS OWN RIGHT BUT 3911 02:46:42,200 --> 02:46:44,520 BECAUSE EACH TIME WE WERE ALWAYS 3912 02:46:44,520 --> 02:46:46,560 DEALING WITH THIS CHALLENGING 3913 02:46:46,560 --> 02:46:49,480 BEHAVIOR AND I BELIEVE BECAUSE 3914 02:46:49,480 --> 02:46:51,800 OF HIS SIZE AND HIS SKIN 3915 02:46:51,800 --> 02:46:53,680 PIGMENTATION IT WAS A STRUGGLE 3916 02:46:53,680 --> 02:46:56,200 FOR HIM TO BE EDUCATED THE WAY 3917 02:46:56,200 --> 02:46:56,800 HE DESERVED. 3918 02:46:56,800 --> 02:46:58,120 SO WE SPENT 15 YEARS OF TRYING 3919 02:46:58,120 --> 02:47:01,280 TO GET HIM TO UTILIZE A DEVICE 3920 02:47:01,280 --> 02:47:02,800 THAT WOULD HELP HIM GET HIS 3921 02:47:02,800 --> 02:47:04,000 NEEDS AND WANTS MET. 3922 02:47:04,000 --> 02:47:05,680 HE HAD TO LISTEN PEOPLE AROUND 3923 02:47:05,680 --> 02:47:10,400 HIM SPEAK NEGATIVELY ABOUT HIM 3924 02:47:10,400 --> 02:47:12,680 INCLUDING HIS TEACHERS, 3925 02:47:12,680 --> 02:47:14,400 INCLUDING THE PEOPLE THERE WERE 3926 02:47:14,400 --> 02:47:16,320 SUPPOSED TO BE THERE AND AIDE 3927 02:47:16,320 --> 02:47:19,280 WHERE'S LE WAS BULLIED. 3928 02:47:19,280 --> 02:47:22,000 HE STARTED DOING THINGS NOT JUST 3929 02:47:22,000 --> 02:47:24,440 WITH SELF-INJURIOUS BEHAVIORS 3930 02:47:24,440 --> 02:47:26,400 BECAUSE HE WAS NOT BEING HEARD. 3931 02:47:26,400 --> 02:47:29,200 I WOULD TELL PEOPLE ALL THE TIME 3932 02:47:29,200 --> 02:47:30,800 JUST BECAUSE HE CANNOT SPEAK THE 3933 02:47:30,800 --> 02:47:32,680 LANGUAGE WE DO DOES NOT MEAN 3934 02:47:32,680 --> 02:47:36,040 HE'S NOT COMPETENT IN HIS OWN 3935 02:47:36,040 --> 02:47:37,240 RIGHT. 3936 02:47:37,240 --> 02:47:38,800 HE UNDERSTANDS WHAT IS BEING 3937 02:47:38,800 --> 02:47:43,240 SAID AROUND HIM, TO HIM AND WHAT 3938 02:47:43,240 --> 02:47:46,280 IS HAPPENING AND BECAUSE OF THAT 3939 02:47:46,280 --> 02:47:47,800 REACTIONS COME OUT OF HIM 3940 02:47:47,800 --> 02:47:49,280 BECAUSE OF THAT. 3941 02:47:49,280 --> 02:47:53,240 WE SPENT YEARS FIGHTING FOR 3942 02:47:53,240 --> 02:47:53,960 THAT. 3943 02:47:53,960 --> 02:47:56,360 SOMEONE SPOKE ABOUT LITERACY. 3944 02:47:56,360 --> 02:48:03,320 IT'S JUST NOW IN THIS AGE OF 20 3945 02:48:03,320 --> 02:48:05,320 BECAUSE OF THE FIGHT WITH THE 3946 02:48:05,320 --> 02:48:07,040 SCHOOL DISTRICT AND FIGHTS WHAT 3947 02:48:07,040 --> 02:48:09,120 HAVE YOU SO WHERE INCLUDED 3948 02:48:09,120 --> 02:48:11,200 ATTORNEYS AND WHAT HAVE YOU TO 3949 02:48:11,200 --> 02:48:14,400 FIGHT FOR WHAT HE NEEDED AND 3950 02:48:14,400 --> 02:48:16,200 RIGHT FOR HIM OR GETTING HIM TO 3951 02:48:16,200 --> 02:48:17,600 THE LITERACY ISSUE. 3952 02:48:17,600 --> 02:48:20,400 WE'RE LIKE 15 YEARS BEHIND THE 8 3953 02:48:20,400 --> 02:48:20,800 BALL. 3954 02:48:20,800 --> 02:48:24,400 WHEN MS. ZIMMERMAN SPOKE AND HAD 3955 02:48:24,400 --> 02:48:25,920 THESE SUGGESTIONS TO YOU, I 3956 02:48:25,920 --> 02:48:27,600 TRULY HOPE YOU TAKE IT TO HEART 3957 02:48:27,600 --> 02:48:29,160 BECAUSE I THINK MY SON COULD BE 3958 02:48:29,160 --> 02:48:31,280 ONE OF THOSE PEOPLE THAT COULD 3959 02:48:31,280 --> 02:48:33,560 BE HERE TODAY BECAUSE OF THE 3960 02:48:33,560 --> 02:48:35,760 LACK OF PEOPLE NOT BELIEVING IN 3961 02:48:35,760 --> 02:48:37,320 HIM OR GIVING HIM THAT 3962 02:48:37,320 --> 02:48:38,400 OPPORTUNITY, PREJUDGING HIM 3963 02:48:38,400 --> 02:48:40,600 BECAUSE OF THE SIZE HE IS, 3964 02:48:40,600 --> 02:48:42,480 BECAUSE HE'S QUITE TALL, BECAUSE 3965 02:48:42,480 --> 02:48:45,600 OF THE SKIN TONE HE HAS, HE FELT 3966 02:48:45,600 --> 02:48:47,600 HE'S NOT CAPABLE OF LEARNING, IT 3967 02:48:47,600 --> 02:48:48,080 WASN'T RIGHT. 3968 02:48:48,080 --> 02:48:50,400 BECAUSE OF A CAREGIVER AND MOM 3969 02:48:50,400 --> 02:48:52,320 AND ADVOCATING, IT'S SOMETHING 3970 02:48:52,320 --> 02:48:53,520 YOU SHOULD NEVER HAVE TO 3971 02:48:53,520 --> 02:48:55,240 ADVOCATE IS FOR THE EDUCATION 3972 02:48:55,240 --> 02:48:56,360 FOR YOUR CHILD. 3973 02:48:56,360 --> 02:48:58,080 THE EDUCATIONAL SYSTEM IS NOT 3974 02:48:58,080 --> 02:49:04,120 SET UP FOR PEOPLE WHO HAVE 3975 02:49:04,120 --> 02:49:06,200 DEVICES OR USE AUGMENTATIVE 3976 02:49:06,200 --> 02:49:06,560 COMMUNICATION. 3977 02:49:06,560 --> 02:49:10,240 SMART TVs IN THE CLASSROOM TO 3978 02:49:10,240 --> 02:49:11,480 WHERE HE FEELS INCLUDED. 3979 02:49:11,480 --> 02:49:13,680 ONE THING THAT WAS A CHALLENGE 3980 02:49:13,680 --> 02:49:15,280 FOR HIM WAS HE DIDN'T FEEL THERE 3981 02:49:15,280 --> 02:49:16,600 WAS ANYONE ELSE AROUND HIM DOING 3982 02:49:16,600 --> 02:49:17,960 THE SAME THING AND THE DEVICE 3983 02:49:17,960 --> 02:49:20,120 WAS USED FOR OTHER PEOPLE TO GET 3984 02:49:20,120 --> 02:49:22,880 SOMETHING OUT OF HIM WHICH 3985 02:49:22,880 --> 02:49:23,960 WASN'T RIGHT. 3986 02:49:23,960 --> 02:49:28,920 SO FOR ME, I THINK IT IS TO 3987 02:49:28,920 --> 02:49:30,360 REALIZE EVERYTHING PEOPLE ARE 3988 02:49:30,360 --> 02:49:31,920 TALKING ABOUT, RESEARCH. 3989 02:49:31,920 --> 02:49:33,800 THERE'S A MULTITUDE OF OTHER 3990 02:49:33,800 --> 02:49:37,000 PEOPLE THAT ARE OLDER THAT TRULY 3991 02:49:37,000 --> 02:49:38,200 NEED THE INTERVENTION IN REGARDS 3992 02:49:38,200 --> 02:49:40,560 TO RESEARCH WHERE THEY'RE 3993 02:49:40,560 --> 02:49:42,920 LOOKING TO CONSIDER THEY NEED TO 3994 02:49:42,920 --> 02:49:44,040 BE A PART OF THE COMMUNITY TOO 3995 02:49:44,040 --> 02:49:45,200 BECAUSE YOU'LL LEARN OF WHAT 3996 02:49:45,200 --> 02:49:46,360 OCCURRED OR DID NOT OCCUR IN 3997 02:49:46,360 --> 02:49:50,800 THEM THAT COULD BE HELPFUL GOING 3998 02:49:50,800 --> 02:49:51,040 FORWARD. 3999 02:49:51,040 --> 02:49:54,640 I KNOW WE'RE SHORT ON TIME AND 4000 02:49:54,640 --> 02:49:56,400 MS. ZIMMERMAN SO MUCH OF WHAT I 4001 02:49:56,400 --> 02:50:00,560 WANTED TO SAY AND I ILLUMINATE 4002 02:50:00,560 --> 02:50:04,200 EVERYTHING SHE SAID AND MY HAT'S 4003 02:50:04,200 --> 02:50:05,600 TOTALLY OFF TO YOU SO I'M GOING 4004 02:50:05,600 --> 02:50:07,320 TO STOP SPEAKING. 4005 02:50:07,320 --> 02:50:09,440 >> THANK YOU VERY MUCH, MS. 4006 02:50:09,440 --> 02:50:09,640 SHAW. 4007 02:50:09,640 --> 02:50:12,560 I THINK WE ALL SHARE WITH YOU 4008 02:50:12,560 --> 02:50:14,400 THE INTENSITY OF THE NEED IN 4009 02:50:14,400 --> 02:50:16,800 THIS AREA AND WE APPRECIATE YOU 4010 02:50:16,800 --> 02:50:19,320 COMING AND SHARING YOUR OWN 4011 02:50:19,320 --> 02:50:21,920 STORY OF YOUR SON AS WELL. 4012 02:50:21,920 --> 02:50:23,280 THERE ARE A LOT OF PEOPLE WHO 4013 02:50:23,280 --> 02:50:28,480 WANT TO MAKE COMMENTS AND 4014 02:50:28,480 --> 02:50:33,200 PERHAPS FROM IACC. 4015 02:50:33,200 --> 02:50:35,600 FIRST IS SAM CRANE. 4016 02:50:35,600 --> 02:50:38,040 I'LL ASK EACH MAKE COMMENT OR 4017 02:50:38,040 --> 02:50:39,000 QUESTION, IF IT'S A QUESTION TO 4018 02:50:39,000 --> 02:50:48,800 WHOM IT SHOULD BE ADDRESSED. 4019 02:50:48,800 --> 02:50:50,800 >> I WANT TO TALK ABOUT THE NEED 4020 02:50:50,800 --> 02:50:53,200 FOR RESEARCH ABOUT HIGH QUALITY 4021 02:50:53,200 --> 02:50:56,000 AAC SUPPORTS FOR ADULTS. 4022 02:50:56,000 --> 02:50:58,200 A LOT OF RESEARCH -- STILL NOT 4023 02:50:58,200 --> 02:51:01,720 ENOUGH RESEARCH BUT WHEN WE LOOK 4024 02:51:01,720 --> 02:51:05,400 AT RESEARCH ON AAC SUPPORTS IT'S 4025 02:51:05,400 --> 02:51:10,520 LARGELY FOCUSSED ON LANGUAGE 4026 02:51:10,520 --> 02:51:12,200 LEARNERS INCLUDING CHILDREN AND 4027 02:51:12,200 --> 02:51:18,600 WE HAVE SO LITTLE INFORMATION ON 4028 02:51:18,600 --> 02:51:20,400 HOW TO MAKE SURE THE AAC WORKS 4029 02:51:20,400 --> 02:51:22,120 FOR ADULTS. 4030 02:51:22,120 --> 02:51:27,240 THERE'S CRITICAL PERIODS FOR 4031 02:51:27,240 --> 02:51:31,720 LANGUAGE AND PEOPLE LEARN 4032 02:51:31,720 --> 02:51:33,440 LANGUAGE DIFFERENTLY IN 4033 02:51:33,440 --> 02:51:33,720 ADULTHOOD. 4034 02:51:33,720 --> 02:51:35,280 THERE'S NO REASON TO THINK IT'S 4035 02:51:35,280 --> 02:51:36,560 NOT TRUE FOR AUTISTIC PEOPLE 4036 02:51:36,560 --> 02:51:38,800 THOUGH WE KNOW IT'S TRUE FOR 4037 02:51:38,800 --> 02:51:39,880 NON-AUTISTIC PEOPLE. 4038 02:51:39,880 --> 02:51:42,920 WE REALLY CRITICALLY NEED THAT 4039 02:51:42,920 --> 02:51:43,240 RESEARCH. 4040 02:51:43,240 --> 02:51:45,360 THERE'S SO MANY PEOPLE WHO HAVE 4041 02:51:45,360 --> 02:51:47,280 NOT BEEN SERVED WHO MISS OUT ON 4042 02:51:47,280 --> 02:51:49,480 GETTING THOSE SERVICES AS 4043 02:51:49,480 --> 02:51:50,800 CHILDREN AND WE CAN'T LEAVE THEM 4044 02:51:50,800 --> 02:51:51,040 BEHIND. 4045 02:51:51,040 --> 02:52:15,240 >> THANK YOU VERY MUCH. 4046 02:52:15,240 --> 02:52:17,800 >> MS. SHAW, I SEE YOU AS A 4047 02:52:17,800 --> 02:52:18,800 MOTHER AND KEEP TAKING DEEP 4048 02:52:18,800 --> 02:52:20,680 BREATHS AND KEEP FIGHTING THAT 4049 02:52:20,680 --> 02:52:22,640 FIGHT I AGREE MORE RESEARCH IS 4050 02:52:22,640 --> 02:52:27,320 NEEDED AROUND AAC AS IT RELATES 4051 02:52:27,320 --> 02:52:28,760 PARENT INTERVENTIONS AS 4052 02:52:28,760 --> 02:52:30,160 DR. KASARI SHARED. 4053 02:52:30,160 --> 02:52:32,400 I HOPE IT WILL HELP BRIDGE GAPS 4054 02:52:32,400 --> 02:52:33,800 BETWEEN DISCIPLINES AND SERVICE 4055 02:52:33,800 --> 02:52:35,240 SYSTEMS AND CREATE MORE 4056 02:52:35,240 --> 02:52:36,400 OPPORTUNITIES FOR INDIVIDUAL 4057 02:52:36,400 --> 02:52:39,080 SUPPORTS AND SERVICES. 4058 02:52:39,080 --> 02:52:40,560 UNFORTUNATELY, DR. LIGHT I'M NOT 4059 02:52:40,560 --> 02:52:42,200 SURPRISED ABOUT THE DISPARITIES 4060 02:52:42,200 --> 02:52:43,760 IN ACCESS TO AAC. 4061 02:52:43,760 --> 02:52:47,160 IN MY EXPERIENCE SUPPORTING MY 4062 02:52:47,160 --> 02:52:48,680 SON I FOUND IT DIFFICULT TO 4063 02:52:48,680 --> 02:52:51,280 GENERALIZE AND ADOPT THE USE AT 4064 02:52:51,280 --> 02:52:55,240 HOME WITH HIM AS PROVIDERS IN 4065 02:52:55,240 --> 02:52:57,240 THE SCHOOL AND WITH COMMUNITY 4066 02:52:57,240 --> 02:53:03,320 PROVIDERS WHO WOULD NOT ADOPT 4067 02:53:03,320 --> 02:53:04,400 AAC. 4068 02:53:04,400 --> 02:53:06,720 I'M NOT GOING TO SAY THEY DIDN'T 4069 02:53:06,720 --> 02:53:09,480 TRY BUT THE RESPONSE WAS HE CAN 4070 02:53:09,480 --> 02:53:09,760 TALK. 4071 02:53:09,760 --> 02:53:11,920 WHY DO WE WANT TO SUPPORT HIS 4072 02:53:11,920 --> 02:53:12,840 VERBAL COMMUNICATION? 4073 02:53:12,840 --> 02:53:14,280 LOOKING BACK NOW AND LISTENING 4074 02:53:14,280 --> 02:53:15,720 TO WHAT YOU ALL SHARED TODAY, I 4075 02:53:15,720 --> 02:53:17,360 CAN SEE THE TRAINING IS NEEDED 4076 02:53:17,360 --> 02:53:18,000 ACROSS DISCIPLINES TO SUPPORT 4077 02:53:18,000 --> 02:53:22,680 THE USE OF AAC AND OBVIOUSLY 4078 02:53:22,680 --> 02:53:24,200 CAN'T HAVE ENOUGH RESEARCH. 4079 02:53:24,200 --> 02:53:26,600 MOST ARE AGREEING HERE TODAY 4080 02:53:26,600 --> 02:53:31,320 ABOUT THAT. 4081 02:53:31,320 --> 02:53:33,360 IN ADDITION TO ACCESS TO 4082 02:53:33,360 --> 02:53:35,280 COMMUNICATION AND EMPLOYMENT 4083 02:53:35,280 --> 02:53:37,600 ETCETERA, NOT BEING ABLE TO 4084 02:53:37,600 --> 02:53:39,280 COMMUNICATE BECOMES AN ISSUE OF 4085 02:53:39,280 --> 02:53:39,560 SAFETY. 4086 02:53:39,560 --> 02:53:40,840 IF YOU CAN'T COMMUNICATE HOW CAN 4087 02:53:40,840 --> 02:53:42,440 YOU REPORT IF YOU'RE SICK OR 4088 02:53:42,440 --> 02:53:44,160 THERE'S ABUSE, ETCETERA. 4089 02:53:44,160 --> 02:53:47,080 AND MS. ZIMMERMAN, THANK YOU FOR 4090 02:53:47,080 --> 02:53:48,600 SHARING YOUR EXPERIENCE AND 4091 02:53:48,600 --> 02:53:48,960 RECOMMENDATIONS. 4092 02:53:48,960 --> 02:53:52,120 COULD YOU SHARE WHICH PROGRAM 4093 02:53:52,120 --> 02:53:54,760 YOU USE IN YOUR iPAD TO 4094 02:53:54,760 --> 02:53:55,040 COMMUNICATE? 4095 02:53:55,040 --> 02:53:57,000 I'M NOT SURE I MISSED THAT. 4096 02:53:57,000 --> 02:53:58,920 AND WHAT ADVICE CAN YOU PROVIDE 4097 02:53:58,920 --> 02:54:00,400 TO FAMILY MEMBERS TO FIGURE OUT 4098 02:54:00,400 --> 02:54:03,320 THE BEST AAC SUPPORT FOR THEIR 4099 02:54:03,320 --> 02:54:03,840 LOVED ONES. 4100 02:54:03,840 --> 02:54:04,400 THANK YOU. 4101 02:54:04,400 --> 02:54:05,320 >> MS. ZIMMERMAN, WOULD YOU LIKE 4102 02:54:05,320 --> 02:54:07,280 TO RESPOND? 4103 02:54:07,280 --> 02:54:11,640 >> I CURRENTLY USE THE LOW TEX 4104 02:54:11,640 --> 02:54:15,640 THE VARIATION FLUCTUATES WHICH 4105 02:54:15,640 --> 02:54:16,280 IS WHY MY RECOMMENDATION IS SO 4106 02:54:16,280 --> 02:54:22,840 VITAL. 4107 02:54:22,840 --> 02:54:23,920 >> THANK YOU FOR THAT RESPONSE. 4108 02:54:23,920 --> 02:54:27,200 >> THANK YOU. 4109 02:54:27,200 --> 02:54:33,000 >> NEXT WE HAVE A QUESTION FROM 4110 02:54:33,000 --> 02:54:33,200 DENA. 4111 02:54:33,200 --> 02:54:35,760 >> THANK YOU TO ALL OUR 4112 02:54:35,760 --> 02:54:37,720 SPEAKERS. 4113 02:54:37,720 --> 02:54:39,760 IT WAS AN EXCELLENT 4114 02:54:39,760 --> 02:54:40,920 PRESENTATION. 4115 02:54:40,920 --> 02:54:44,080 I JUST WANTED TO SAY TO THE MOMS 4116 02:54:44,080 --> 02:54:46,640 JUST KEEP THE GOOD FIGHT UP. 4117 02:54:46,640 --> 02:54:49,240 MY SON WAS NOT PROVIDED ACCESS 4118 02:54:49,240 --> 02:54:51,640 TO TECHNOLOGY UNTIL HE WAS WELL 4119 02:54:51,640 --> 02:54:54,520 INTO COLLEGE AND I DO HAVE 4120 02:54:54,520 --> 02:54:56,600 RELATIVE PRIVILEGE AND I HAVE TO 4121 02:54:56,600 --> 02:54:59,800 NOT WORK AND TRY TO HELP MY SON 4122 02:54:59,800 --> 02:55:02,360 GET THROUGH SCHOOL AND I STILL 4123 02:55:02,360 --> 02:55:04,280 WOULD NOT WIN THAT BATTLE SO 4124 02:55:04,280 --> 02:55:07,800 HANG IN THERE. 4125 02:55:07,800 --> 02:55:11,800 I JUST WANTED TO THANK YOU, 4126 02:55:11,800 --> 02:55:14,120 JORDAN CALLEY SAYS HI. 4127 02:55:14,120 --> 02:55:16,920 I WANT TO THANK YOU FOR THE 4128 02:55:16,920 --> 02:55:19,280 COMMENTS ESPECIALLY AROUND 4129 02:55:19,280 --> 02:55:19,800 TRAUMA. 4130 02:55:19,800 --> 02:55:22,040 I HOPE WE CAN CONTINUE TO 4131 02:55:22,040 --> 02:55:22,920 DISCUSS AND DIALOGUE IN THE 4132 02:55:22,920 --> 02:55:27,440 RESEARCH THAT EVEN THOUGH A 4133 02:55:27,440 --> 02:55:29,360 PERSON DEVELOPS SOME LANGUAGE 4134 02:55:29,360 --> 02:55:30,640 CAPACITIES DOESN'T MEAN WE 4135 02:55:30,640 --> 02:55:37,120 SHOULDN'T CONTINUE TO OFFER AAC. 4136 02:55:37,120 --> 02:55:39,160 AS YETTA INFERRED I WANT TO GO 4137 02:55:39,160 --> 02:55:45,640 INTO GREATER DETAIL ABOUT THAT. 4138 02:55:45,640 --> 02:55:47,760 MY SON SPEAKS WITH DIRECTIVES 4139 02:55:47,760 --> 02:55:50,520 AND HE AUTHORIZED ME TO DIRECT 4140 02:55:50,520 --> 02:55:52,240 THIS AND HIGHLY FLUENT IN HIS 4141 02:55:52,240 --> 02:55:54,720 AREAS OF SPECIAL INTERESTS. 4142 02:55:54,720 --> 02:56:03,800 HE DOES NOT USE INTEROGTORY 4143 02:56:03,800 --> 02:56:07,120 LANGUAGE AND WAS SINGLED OUT AND 4144 02:56:07,120 --> 02:56:08,320 TORMENTED BY EDUCATORS AND TO 4145 02:56:08,320 --> 02:56:12,920 THIS DAY I STILL DO NOT KNOW 4146 02:56:12,920 --> 02:56:16,920 EXACTLY WHAT HAPPENED BECAUSE HE 4147 02:56:16,920 --> 02:56:18,160 CANNOT COMMUNICATE ANYTHING 4148 02:56:18,160 --> 02:56:19,920 AROUND LANGUAGE WHEN HE'S 4149 02:56:19,920 --> 02:56:23,560 EMOTIONAL. 4150 02:56:23,560 --> 02:56:26,680 I BELIEVE WE WOULD HAVE THOSE 4151 02:56:26,680 --> 02:56:30,120 ANSWERS IF HE HAD NOT BEEN 4152 02:56:30,120 --> 02:56:31,480 WITHHELD FROM HAVING ACCESS TO 4153 02:56:31,480 --> 02:56:32,880 TECHNOLOGY SO VERY LONG. 4154 02:56:32,880 --> 02:56:37,040 SO WHEN WE THINK ABOUT TRAUMA IN 4155 02:56:37,040 --> 02:56:39,760 THIS POPULATION THE DENIAL OF 4156 02:56:39,760 --> 02:56:42,520 THE ACCESS TO TECHNOLOGY IS 4157 02:56:42,520 --> 02:56:45,960 DIRECTLY LINKED TO OUR INABILITY 4158 02:56:45,960 --> 02:56:46,880 TO HELP PEOPLE THERAPEUTICALLY 4159 02:56:46,880 --> 02:56:49,120 PROCESS TRAUMA. 4160 02:56:49,120 --> 02:56:54,680 IF YOU CAN'T WRITE ABOUT IT AND 4161 02:56:54,680 --> 02:56:56,320 CAN'T DRAW ABOUT IT OR SPEAK 4162 02:56:56,320 --> 02:56:59,840 ABOUT IT, HOW DO YOU UNPACK A 4163 02:56:59,840 --> 02:57:01,080 TRAUMATIC EVENT? 4164 02:57:01,080 --> 02:57:02,840 I CAN'T EMPHASIZE ENOUGH HOW 4165 02:57:02,840 --> 02:57:04,720 IMPORTANT IT IS WE PROVIDE BOTH 4166 02:57:04,720 --> 02:57:06,240 OPTIONS EARLY ON. 4167 02:57:06,240 --> 02:57:08,720 I'M VERY EXCITED ABOUT 4168 02:57:08,720 --> 02:57:10,240 DR. LIGHT'S RESEARCH WITH PRE 4169 02:57:10,240 --> 02:57:13,400 VERBAL CHILDREN AND WONDERING IF 4170 02:57:13,400 --> 02:57:26,560 THE COMBINATION OF INTERO SE JOOINTEROCEPT IVE 4171 02:57:26,560 --> 02:57:28,200 WORK CAN ADD BECAUSE OF LOWER 4172 02:57:28,200 --> 02:57:29,560 FRUSTRATION LEVELS. 4173 02:57:29,560 --> 02:57:31,800 HAVE YOU SEEING ANYTHING LIKE 4174 02:57:31,800 --> 02:57:34,920 THAT, DR. LIGHT? 4175 02:57:34,920 --> 02:57:37,560 BETTER COPING SKILLS, BETTER 4176 02:57:37,560 --> 02:57:37,920 SELF-REGULATION? 4177 02:57:37,920 --> 02:57:39,760 ANYTHING LIKE THAT IN THE KIDS 4178 02:57:39,760 --> 02:57:40,320 GIVEN TECHNOLOGY SO MUCH 4179 02:57:40,320 --> 02:57:55,160 EARLIER? 4180 02:57:55,160 --> 02:57:59,440 >> THERE ARE PEOPLE SUSPECTED OF 4181 02:57:59,440 --> 02:58:04,120 HAVING AUTISM AND OTHERS WITH 4182 02:58:04,120 --> 02:58:05,680 OTHER DISABILITIES WE'RE 4183 02:58:05,680 --> 02:58:09,040 INTERVENING AND INTRODUCING 4184 02:58:09,040 --> 02:58:10,560 TECHNOLOGIES AND WE'RE SEEING 4185 02:58:10,560 --> 02:58:11,320 INCREASES IN SOCIAL 4186 02:58:11,320 --> 02:58:12,920 PARTICIPATION AND TURN TAKING 4187 02:58:12,920 --> 02:58:15,640 AND LANGUAGE, FIRST WORDS COMING 4188 02:58:15,640 --> 02:58:20,160 EARLIER THAN WE MIGHT TYPICALLY 4189 02:58:20,160 --> 02:58:22,720 EXPECT AND MAKING GAINS AND WE 4190 02:58:22,720 --> 02:58:24,720 HAVE SEEN LOW LEVELS OF 4191 02:58:24,720 --> 02:58:25,640 BEHAVIORAL PROBLEMS BECAUSE THE 4192 02:58:25,640 --> 02:58:27,560 ROOT OF MOST OF THOSE AS WE KNOW 4193 02:58:27,560 --> 02:58:31,320 IS THE LACK OF ABILITY TO 4194 02:58:31,320 --> 02:58:32,520 COMMUNICATE EFFECTIVELY WITH 4195 02:58:32,520 --> 02:58:34,920 OTHERS INTERESTINGLY ENOUGH, 4196 02:58:34,920 --> 02:58:36,720 MANY KIDS WE HAVE TRACKED HAVE 4197 02:58:36,720 --> 02:58:37,920 ALSO ENTERED SCHOOL WITH 4198 02:58:37,920 --> 02:58:39,280 LITERACY SCHOOLS AND I WILL SAY 4199 02:58:39,280 --> 02:58:42,480 THAT THAT HAS DRAMATICALLY THEN 4200 02:58:42,480 --> 02:58:45,960 CHANGED THEIR WHOLE EDUCATIONAL 4201 02:58:45,960 --> 02:58:49,240 EXPERIENCE BECAUSE THEY IMPROVED 4202 02:58:49,240 --> 02:58:50,720 AND NOW IT'S UP TO THE 4203 02:58:50,720 --> 02:58:52,440 EDUCATIONAL SYSTEM TO SUPPORT 4204 02:58:52,440 --> 02:58:54,680 THEM AND WE NEED BETTER SUPPORTS 4205 02:58:54,680 --> 02:58:57,040 TO SHARE THEIR CAPABILITIES AND 4206 02:58:57,040 --> 02:58:58,320 SKILLS WITH OTHERS. 4207 02:58:58,320 --> 02:58:59,480 >> THAT'S GLORIOUS. 4208 02:58:59,480 --> 02:59:01,120 THANK YOU SO MUCH. 4209 02:59:01,120 --> 02:59:02,480 >> THANK YOU. 4210 02:59:02,480 --> 02:59:03,840 I BELIEVE STEVE HAS A COMMENT 4211 02:59:03,840 --> 02:59:05,160 FROM ONE OF THE MEMBERS WHO 4212 02:59:05,160 --> 02:59:15,800 SUBMITTED IT VIA THE CHAT. 4213 02:59:15,800 --> 02:59:19,240 >> THERE'S SOME COMMENTS. 4214 02:59:19,240 --> 02:59:20,720 THREW FOR THE EXCELLENT 4215 02:59:20,720 --> 02:59:21,200 PRESENTATIONS. 4216 02:59:21,200 --> 02:59:22,440 I'D LOVE TO SEE -- 4217 02:59:22,440 --> 02:59:25,320 >> STEVE, I DON'T KNOW IF IT'S 4218 02:59:25,320 --> 02:59:28,520 JUST YOU YOUR AUDIO IS ECHOING 4219 02:59:28,520 --> 02:59:29,480 OR BROKEN UP. 4220 02:59:29,480 --> 02:59:30,280 I'LL GO ON TO THE NEXT PERSON 4221 02:59:30,280 --> 02:59:31,480 AND COME BACK TO YOU. 4222 02:59:31,480 --> 02:59:33,600 SEE IF YOU CAN FIX THAT. 4223 02:59:33,600 --> 02:59:38,320 MARIA FRYER NEXT. 4224 02:59:38,320 --> 02:59:42,760 >> THANK YOU SO MUCH. 4225 02:59:42,760 --> 02:59:45,200 I APPRECIATE THE SPEAKERS AND 4226 02:59:45,200 --> 02:59:47,480 COMMENTS AND A WANTED TO SAY TWO 4227 02:59:47,480 --> 02:59:47,680 THINGS. 4228 02:59:47,680 --> 02:59:52,560 ONE OF A PERSONAL NATURE AND 4229 02:59:52,560 --> 02:59:56,800 THEN MORE SPEAKING TO THE TRAUMA 4230 02:59:56,800 --> 02:59:59,080 AND SAFETY ISSUES. 4231 02:59:59,080 --> 02:59:59,800 I'M INTERESTED MORE IN THE 4232 02:59:59,800 --> 03:00:01,680 SAFETY ASPECTS AND RESPONDING TO 4233 03:00:01,680 --> 03:00:03,720 STUDENTS THAT MAY HAVE BEEN 4234 03:00:03,720 --> 03:00:04,120 VICTIMIZED. 4235 03:00:04,120 --> 03:00:09,560 ON A PERSONAL LEVEL I WANTED TO 4236 03:00:09,560 --> 03:00:29,760 SAY AGAIN TO THE MOMS, THE AND 4237 03:00:29,760 --> 03:00:34,600 ONE DAY AT THE DINNER TABLE SHE 4238 03:00:34,600 --> 03:00:36,480 STARTED SINGING. 4239 03:00:36,480 --> 03:00:37,600 IT'S INTERESTING WHEN YOU TALK 4240 03:00:37,600 --> 03:00:40,760 ABOUT IMITATION AND I KNOW THAT 4241 03:00:40,760 --> 03:00:43,760 I EXPERIENCED THAT FIRST HAND. 4242 03:00:43,760 --> 03:00:47,480 I'M HOPE FUL AND OPTIMISTIC IN 4243 03:00:47,480 --> 03:00:48,760 THE RESEARCH AND I APPRECIATE 4244 03:00:48,760 --> 03:00:51,280 THE PERSONAL STORIES. 4245 03:00:51,280 --> 03:00:56,640 ON A PROFESSIONAL LEVEL I'M VERY 4246 03:00:56,640 --> 03:01:00,720 INTERESTED IN HOW IN TERMS OF WE 4247 03:01:00,720 --> 03:01:04,000 COULD DO BETTER IN TERMS OF 4248 03:01:04,000 --> 03:01:05,560 TRAINING OUR SCHOOL RESOURCE 4249 03:01:05,560 --> 03:01:06,640 OFFICERS ESPECIALLY THROUGH A 4250 03:01:06,640 --> 03:01:08,840 LOT OF OUR GRANT-FUNDED 4251 03:01:08,840 --> 03:01:09,080 PROGRAMS. 4252 03:01:09,080 --> 03:01:11,400 ONE IN PARTICULAR I'M THINKING 4253 03:01:11,400 --> 03:01:17,560 ABOUT IS IS THE STOP PROGRAM. 4254 03:01:17,560 --> 03:01:20,240 BASICALLY WE'RE BEGINNING A 4255 03:01:20,240 --> 03:01:22,680 WHOLE NEW AREA OF THE PROGRAM IN 4256 03:01:22,680 --> 03:01:27,800 TRAININGS WHERE TOWARDS OFFICERS 4257 03:01:27,800 --> 03:01:30,760 AND TEACHERS AND EDUCATORS ABOUT 4258 03:01:30,760 --> 03:01:33,440 STUDENTS ON THE AUTISM SPECTRUM 4259 03:01:33,440 --> 03:01:34,960 AND HOW TO BETTER CONNECT THEM 4260 03:01:34,960 --> 03:01:36,760 WITH TREATMENT. 4261 03:01:36,760 --> 03:01:42,440 I'D LIKE TO LEARN MORE ABOUT HOW 4262 03:01:42,440 --> 03:01:44,800 TO RESPOND TO STUDENTS WHO ARE 4263 03:01:44,800 --> 03:01:46,040 NON-VERBAL THAT MAY HAVE TRAUMA 4264 03:01:46,040 --> 03:01:49,640 AND MAY NEED TO UNPACK THOSE 4265 03:01:49,640 --> 03:01:51,200 ISSUES AND WHAT THEIR EXPERIENCE 4266 03:01:51,200 --> 03:01:54,400 WAS AND HOW TO MAKE A REPORT AND 4267 03:01:54,400 --> 03:01:56,360 PERHAPS TALK ABOUT THE 4268 03:01:56,360 --> 03:01:59,000 VICTIMIZATION AND HOW TO CONNECT 4269 03:01:59,000 --> 03:02:00,760 THEM TO APPROPRIATE TREATMENT 4270 03:02:00,760 --> 03:02:01,560 AND SERVICES. 4271 03:02:01,560 --> 03:02:05,240 I'M VERY INTERESTED IN LEARNING 4272 03:02:05,240 --> 03:02:10,440 MORE ABOUT WHAT IS AVAILABLE IN 4273 03:02:10,440 --> 03:02:12,480 TERMS OF ACTUAL TRAINING FOR 4274 03:02:12,480 --> 03:02:13,360 STAFF AND SCHOOL RESOURCE 4275 03:02:13,360 --> 03:02:13,640 OFFICERS. 4276 03:02:13,640 --> 03:02:14,080 I'LL STOP THERE. 4277 03:02:14,080 --> 03:02:16,400 THANK YOU FOR THE PRESENTATIONS 4278 03:02:16,400 --> 03:02:16,600 TODAY. 4279 03:02:16,600 --> 03:02:17,280 THEY WERE INCREDIBLY 4280 03:02:17,280 --> 03:02:17,600 INFORMATIVE. 4281 03:02:17,600 --> 03:02:22,000 THANK YOU. 4282 03:02:22,000 --> 03:02:23,120 >> THANK YOU. 4283 03:02:23,120 --> 03:02:24,800 WE'LL GO TO MATTHEW -- WE'LL 4284 03:02:24,800 --> 03:02:26,520 COME BACK TO STEVE AND SEE IF 4285 03:02:26,520 --> 03:02:30,240 HIS AUDIO IS WORKING BETTER. 4286 03:02:30,240 --> 03:02:31,320 >> CAN YOU HEAR ME? 4287 03:02:31,320 --> 03:02:32,600 >> MUCH BETTER. 4288 03:02:32,600 --> 03:02:35,200 >> GO AHEAD. 4289 03:02:35,200 --> 03:02:37,480 >> THIS IS A COMMENT FROM HARI. 4290 03:02:37,480 --> 03:02:38,920 THANK YOU FOR THE EXCELLENT 4291 03:02:38,920 --> 03:02:40,880 PRESENTATIONS. 4292 03:02:40,880 --> 03:02:42,520 I WOULD LOVE TO SEE MORE 4293 03:02:42,520 --> 03:02:46,080 RESEARCH ON APRAXIA AND SENSORY 4294 03:02:46,080 --> 03:02:48,560 SYSTEMS AND BODY SCHEMA. 4295 03:02:48,560 --> 03:02:50,640 CURRENT TECHNOLOGY IS NOT ALWAYS 4296 03:02:50,640 --> 03:02:53,600 INTUITIVE TO USE AND SOMETIMES 4297 03:02:53,600 --> 03:02:55,640 CONFUSING AND SHORT BATTERY LIFE 4298 03:02:55,640 --> 03:02:58,720 AND TOO MANY MENUS TO NAVIGATE 4299 03:02:58,720 --> 03:03:09,400 AND NOISY, OVER CROWDED SCREENS. 4300 03:03:09,640 --> 03:03:11,000 MINE NEVER HAD INDIAN FOOD AND 4301 03:03:11,000 --> 03:03:16,160 IT MESSES UP THE WAY IT SAYS MY 4302 03:03:16,160 --> 03:03:18,360 NAME AND TECHNOLOGY DIDN'T 4303 03:03:18,360 --> 03:03:20,800 FUNCTION AT THE POOL OR SOCCER 4304 03:03:20,800 --> 03:03:23,040 THOUGH EDUCATION IS REQUIRED IN 4305 03:03:23,040 --> 03:03:23,640 THOSE ENVIRONMENT. 4306 03:03:23,640 --> 03:03:26,280 ARE VSDs AVAILABLE TO THE 4307 03:03:26,280 --> 03:03:29,560 GENERAL PUBLIC? 4308 03:03:29,560 --> 03:03:32,280 THE SECOND PART IS, JORDYN, MANY 4309 03:03:32,280 --> 03:03:34,800 OF YOUR EDUCATIONAL BARRIERS AND 4310 03:03:34,800 --> 03:03:37,400 MEDICAL BARRIERS LIKE ENDING UP 4311 03:03:37,400 --> 03:03:41,200 HOSPITALIZED WAS DÉJÀ VU FOR ME. 4312 03:03:41,200 --> 03:03:44,280 THANK YOU FOR A BRILLIANT 4313 03:03:44,280 --> 03:03:44,640 PRESENTATION. 4314 03:03:44,640 --> 03:03:46,600 AND THANK YOU, BENITA. 4315 03:03:46,600 --> 03:03:50,760 WHEN YOU ARE NON-SPEAKING 4316 03:03:50,760 --> 03:03:52,120 PARENTS ARE THE BEST ADVOCATES 4317 03:03:52,120 --> 03:03:55,400 BECAUSE NO ONE ELSE REALLY CARES 4318 03:03:55,400 --> 03:03:57,520 OR BOTHERS TO CARE AND YOU'RE 4319 03:03:57,520 --> 03:03:59,080 PUSHED THROUGH AND EXISTED OUT 4320 03:03:59,080 --> 03:04:00,680 OF THE SYSTEM AT AGE 22 WITH NO 4321 03:04:00,680 --> 03:04:02,080 SUPPORTS OR SKILLS. 4322 03:04:02,080 --> 03:04:03,480 AND THEN EVERYONE COMPLAINS WHAT 4323 03:04:03,480 --> 03:04:10,800 A BURDEN THIS GROUP IS. 4324 03:04:10,800 --> 03:04:11,520 >> THANK YOU. 4325 03:04:11,520 --> 03:04:12,720 THERE WAS A QUESTION IN THERE I 4326 03:04:12,720 --> 03:04:14,440 DON'T KNOW IF ANYONE CAN ANSWER 4327 03:04:14,440 --> 03:04:17,480 WITH THE AVAILABILITY OF THE 4328 03:04:17,480 --> 03:04:18,680 TOOLS FOR THE GENERAL PUBLIC. 4329 03:04:18,680 --> 03:04:20,720 I KNOW MANY ARE INCLUDED IN 4330 03:04:20,720 --> 03:04:22,480 TECHNOLOGIES BUT WONDERING IF 4331 03:04:22,480 --> 03:04:24,720 THERE'S SPECIFIC ANSWERS TO THE 4332 03:04:24,720 --> 03:04:27,360 QUESTION. 4333 03:04:27,360 --> 03:04:30,080 >> I CAN TAKE THAT ON. 4334 03:04:30,080 --> 03:04:32,760 THEY HAVE AVAILABLE FROM A 4335 03:04:32,760 --> 03:04:34,160 VARIETY OF ASSISTIVE TECHNOLOGY 4336 03:04:34,160 --> 03:04:35,600 DEVELOPERS AND IF YOU WANT TO 4337 03:04:35,600 --> 03:04:38,560 FIRE ME AN E-MAIL AFTERWARDS I 4338 03:04:38,560 --> 03:04:40,080 CAN SEND MORE SPECIFICS ABOUT 4339 03:04:40,080 --> 03:04:41,000 IT. 4340 03:04:41,000 --> 03:04:43,280 I WANTED TO EMPHASIZE I 4341 03:04:43,280 --> 03:04:44,960 APPRECIATED YOUR COMMENTS ABOUT 4342 03:04:44,960 --> 03:04:46,760 THE LIMITATIONS OF MANY OF OUR 4343 03:04:46,760 --> 03:04:51,040 CURRENT APPS AND TECHNOLOGIES 4344 03:04:51,040 --> 03:04:53,520 BECAUSE I BELIEVE WE HAVE NOT BY 4345 03:04:53,520 --> 03:04:56,600 ANY MEANS EXPLOITED THE FULL 4346 03:04:56,600 --> 03:04:57,480 CAPABILITIES OF TECHNOLOGIES 4347 03:04:57,480 --> 03:04:58,680 GENERALLY AND NEED TO THINK 4348 03:04:58,680 --> 03:05:00,440 THROUGH THE CHALLENGES AND 4349 03:05:00,440 --> 03:05:03,080 PROBLEMS YOU'VE TALKED ABOUT AND 4350 03:05:03,080 --> 03:05:05,000 FIGURE OUT HOW TO DESIGN MORE 4351 03:05:05,000 --> 03:05:06,240 EFFECTIVE SUPPORTS THAT MEET THE 4352 03:05:06,240 --> 03:05:08,520 NEEDS OF THE PEOPLE USING THEM 4353 03:05:08,520 --> 03:05:11,960 AS OPPOSED TO JUST APPLYING THE 4354 03:05:11,960 --> 03:05:15,080 TECHNOLOGIES THAT WE HAVE AND 4355 03:05:15,080 --> 03:05:17,600 FORCING PEOPLE TO LEARN HOW TO 4356 03:05:17,600 --> 03:05:24,400 USE THEM INSTEAD. 4357 03:05:24,400 --> 03:05:26,000 >> WE'RE RUNNING A LITTLE BIT 4358 03:05:26,000 --> 03:05:28,000 LATE BUT THERE'S SUCH A DESIRE 4359 03:05:28,000 --> 03:05:29,920 FOR DISCUSSION ON THIS POINT 4360 03:05:29,920 --> 03:05:35,560 WE'LL EXTEND THIS AND CURTAIL 4361 03:05:35,560 --> 03:05:39,280 OTHER PARTS OF THE PROGRAM. 4362 03:05:39,280 --> 03:05:42,440 >> I'M A MEMBER OF THE 4363 03:05:42,440 --> 03:05:42,680 COMMITTEE. 4364 03:05:42,680 --> 03:05:45,560 I HAVE A COMMENT AND A QUESTION. 4365 03:05:45,560 --> 03:05:49,560 THE QUESTION IS FOR DR. COOPER. 4366 03:05:49,560 --> 03:05:54,480 SO THANK YOU SO MUCH THIS WAS AN 4367 03:05:54,480 --> 03:05:55,320 EXTRAORDINARY PANEL AND 4368 03:05:55,320 --> 03:05:56,320 PRESENTATION FROM THE 4369 03:05:56,320 --> 03:05:58,240 RESEARCHERS WHO SPOKE AND 4370 03:05:58,240 --> 03:06:00,320 DR. COOPER TO THE PEOPLE WITH 4371 03:06:00,320 --> 03:06:01,520 LIVED EXPERIENCE. 4372 03:06:01,520 --> 03:06:05,520 IT'S ONE OF THE BEST 4373 03:06:05,520 --> 03:06:06,640 PRESENTATIONS ON COMMUNICATION 4374 03:06:06,640 --> 03:06:13,520 AUTISM I THINK OF RECENT MEMORY. 4375 03:06:13,520 --> 03:06:18,480 SO FURTHER COMMENT IS THERE'S 4376 03:06:18,480 --> 03:06:21,520 BEEN A LOT OF DISCUSSION ABOUT 4377 03:06:21,520 --> 03:06:23,360 HOW TO MOVE THINGS INTO PRACTICE 4378 03:06:23,360 --> 03:06:24,720 AND SOMEONE SAID IT MORE 4379 03:06:24,720 --> 03:06:27,160 ELOQUENTLY THAN THAT IN THEIR 4380 03:06:27,160 --> 03:06:27,480 PRESENTATION. 4381 03:06:27,480 --> 03:06:31,400 AND THAT IS THE CHALLENGE IN 4382 03:06:31,400 --> 03:06:32,480 MANY AREAS. 4383 03:06:32,480 --> 03:06:35,520 AND LOOKING AT INTERVENTIONS IN 4384 03:06:35,520 --> 03:06:36,320 AUTISM AS WELL AS ACROSS THE 4385 03:06:36,320 --> 03:06:38,240 REST OF MEDICINE, THE COIN OF 4386 03:06:38,240 --> 03:06:40,960 THE REALM IS RANDOMIZED CONTROL 4387 03:06:40,960 --> 03:06:41,200 TRIALS. 4388 03:06:41,200 --> 03:06:43,880 WHEN YOU HAVE LARGE RANDOMIZED 4389 03:06:43,880 --> 03:06:45,600 CONTROL TRIALS, THAT'S WHAT'S 4390 03:06:45,600 --> 03:06:47,080 GETS THINGS PAID FOR AND 4391 03:06:47,080 --> 03:06:48,720 DISSEMINATED AND CLINICIANS TO 4392 03:06:48,720 --> 03:06:53,560 USE THEM. 4393 03:06:53,560 --> 03:06:58,000 IN AUTISM WE HAVE DOZENS OF 4394 03:06:58,000 --> 03:07:01,560 STUDIES OF MEDICATION USING 4395 03:07:01,560 --> 03:07:03,560 RANDOMIZED CONTROL TRIALS AND WE 4396 03:07:03,560 --> 03:07:06,480 LOOK AT PSYCHOSOCIAL 4397 03:07:06,480 --> 03:07:07,800 INTERVENTIONS SUCH AS COGNITIVE 4398 03:07:07,800 --> 03:07:09,520 BEHAVIORAL THERAPY, ETCETERA, 4399 03:07:09,520 --> 03:07:12,680 FOR DIFFERENT THINGS IN AUTISM 4400 03:07:12,680 --> 03:07:14,480 AND IN COMMUNICATION 4401 03:07:14,480 --> 03:07:16,160 INTERVENTIONS WE HAVE 4402 03:07:16,160 --> 03:07:18,680 EXCEEDINGLY FEW LARGE RANDOMIZED 4403 03:07:18,680 --> 03:07:20,960 CONTROL TRIALS IN A COCHRAN 4404 03:07:20,960 --> 03:07:21,880 REVIEW FROM 2018 IT IDENTIFIED 4405 03:07:21,880 --> 03:07:25,200 TWO. 4406 03:07:25,200 --> 03:07:25,760 AND PERHAPS THERE'S BEEN A 4407 03:07:25,760 --> 03:07:29,280 LITTLE MORE SINCE THEN. 4408 03:07:29,280 --> 03:07:33,600 THIS IS AN AREA THAT WE HAVE A 4409 03:07:33,600 --> 03:07:35,280 FAIR NUMBER OF SMALL AND 4410 03:07:35,280 --> 03:07:37,600 SOMETIMES NOT RANDOMIZED TRIALS 4411 03:07:37,600 --> 03:07:41,960 AND HAVE EXCELLENT WORK BEING 4412 03:07:41,960 --> 03:07:44,240 DONE AND IN ORDER TO GAIN ACCESS 4413 03:07:44,240 --> 03:07:47,440 AND MEET THE NEEDS WE HEARD 4414 03:07:47,440 --> 03:07:51,480 ABOUT, WE NEED LARGE RANDOMIZED 4415 03:07:51,480 --> 03:07:53,440 CONTROL TRIALS OR OTHER LARGE 4416 03:07:53,440 --> 03:07:55,280 WAYS TO GENERATE EVIDENCE FOR 4417 03:07:55,280 --> 03:07:56,280 THIS AREA. 4418 03:07:56,280 --> 03:07:57,880 MY QUESTION IS TO DR. COOPER, 4419 03:07:57,880 --> 03:08:02,120 HOW CAN WE MOVE IN THAT 4420 03:08:02,120 --> 03:08:07,680 DIRECTION TO GET THE KIND OF 4421 03:08:07,680 --> 03:08:10,480 SUPPORT NEEDED FOR FUNDING AND 4422 03:08:10,480 --> 03:08:12,680 GREATER DISSEMINATION FOR THE 4423 03:08:12,680 --> 03:08:29,600 CRITICAL INTERVENTIONS? 4424 03:08:29,600 --> 03:08:37,480 >> WE'VE BEEN ENCOURAGING SOME 4425 03:08:37,480 --> 03:09:03,680 AREAS NEED ED IF THERE WERE A 4426 03:09:03,680 --> 03:09:06,720 GROUP OUT THERE THAT'S LISTENING 4427 03:09:06,720 --> 03:09:12,680 TO THIS MEETING AND HAS THE IDEA 4428 03:09:12,680 --> 03:09:21,880 THEN I SAY COME ON IN AND WE 4429 03:09:21,880 --> 03:09:23,880 HAVE COMMENTS WE HEARD TODAY TO 4430 03:09:23,880 --> 03:09:25,120 MOVE THIS AREA ALONG A LITTLE 4431 03:09:25,120 --> 03:09:25,280 BIT. 4432 03:09:25,280 --> 03:09:25,920 THANK YOU VERY MUCH FOR THE 4433 03:09:25,920 --> 03:09:28,880 COMMENT. 4434 03:09:28,880 --> 03:09:31,040 >> THANK YOU, I DON'T KNOW IF 4435 03:09:31,040 --> 03:09:32,080 ANY OF THE INVESTIGATORS CARE TO 4436 03:09:32,080 --> 03:09:33,760 RESPOND TO THE COMMENT BEFORE WE 4437 03:09:33,760 --> 03:09:39,480 MOVE ON. 4438 03:09:39,480 --> 03:09:47,280 I HAVE A COMMENT. 4439 03:09:47,280 --> 03:09:51,440 >> A LOT OF THE MOTHERS OF 4440 03:09:51,440 --> 03:09:53,560 AUTISTIC INDIVIDUALS DESCRIBED 4441 03:09:53,560 --> 03:09:54,720 HOW TRAUMATIZING THE SCHOOL 4442 03:09:54,720 --> 03:09:56,680 EXPERIENCE AND NOT JUST NIH BUT 4443 03:09:56,680 --> 03:09:57,800 DEPARTMENT OF EDUCATION AND 4444 03:09:57,800 --> 03:09:59,840 GETTING EVERYONE AROUND THE 4445 03:09:59,840 --> 03:10:05,040 TABLE TO TAKE ON THE CHALLENGES 4446 03:10:05,040 --> 03:10:19,320 OF INCLUSION AND THAT'S HOW WE 4447 03:10:19,320 --> 03:10:21,120 GET IT INTO SCHOOL SYSTEMS WHERE 4448 03:10:21,120 --> 03:10:24,880 THE MAJORITY OF CHILDREN ARE 4449 03:10:24,880 --> 03:10:25,480 EDUCATED. 4450 03:10:25,480 --> 03:10:27,200 >> DR. KASARI YOU'RE POINTING 4451 03:10:27,200 --> 03:10:32,280 OUT THE FACT THAT THE CURRENCY 4452 03:10:32,280 --> 03:10:38,400 OF HEALTH CARE SYSTEMS AND THOSE 4453 03:10:38,400 --> 03:10:41,080 SYSTEMS ARE THE RANDOMIZED 4454 03:10:41,080 --> 03:10:44,320 CONTROL TRIALS AND LOTS OF 4455 03:10:44,320 --> 03:10:46,080 INTERVENTIONS AND RANDOMIZED 4456 03:10:46,080 --> 03:10:48,640 CONTROL TRIALS AND IT'S NOT 4457 03:10:48,640 --> 03:10:51,000 NECESSARILY ENOUGH FOR A SCHOOL 4458 03:10:51,000 --> 03:10:53,160 SYSTEM TO ADOPT AN OTHERWISE 4459 03:10:53,160 --> 03:10:53,600 EFFICACIOUS PROGRAM. 4460 03:10:53,600 --> 03:10:59,120 I THINK YOU'RE POINTING OUT IT'S 4461 03:10:59,120 --> 03:11:09,440 NOT ONLY THAT PART. 4462 03:11:09,440 --> 03:11:11,920 MOVING ON TO ANOTHER COMMITTEE 4463 03:11:11,920 --> 03:11:12,440 MEMBER, SCOTT. 4464 03:11:12,440 --> 03:11:17,880 >> THANKS TO THE PRESENTERS. 4465 03:11:17,880 --> 03:11:19,360 IT WAS EXCELLENT PRESENTATIONS 4466 03:11:19,360 --> 03:11:21,560 AND THIS FOCUS IS A TIME COMING 4467 03:11:21,560 --> 03:11:24,760 AND I'D LIKE TO ADD THAT NOT 4468 03:11:24,760 --> 03:11:28,720 ONLY FOR RESEARCH BUT FOR OUR 4469 03:11:28,720 --> 03:11:30,240 FEDERAL POLICIES, INITIATIVES WE 4470 03:11:30,240 --> 03:11:31,480 SHOULD HAVE MORE ON THE FOCUS 4471 03:11:31,480 --> 03:11:33,160 FOR EMPLOYMENT, EDUCATION, 4472 03:11:33,160 --> 03:11:33,480 HEALTH CARE. 4473 03:11:33,480 --> 03:11:37,960 I FEEL LIKE AND THIS APPLIES FOR 4474 03:11:37,960 --> 03:11:40,400 RESEARCH THE FOCUS IS SOMETIMES 4475 03:11:40,400 --> 03:11:42,760 GENERAL ACCESS TO AAC 4476 03:11:42,760 --> 03:11:44,520 COMMUNICATION NOT JUST 4477 03:11:44,520 --> 03:11:45,480 OPPORTUNITIES IN SPECIFIC 4478 03:11:45,480 --> 03:11:48,400 SETTINGS AND WHAT BEARS FOR AAC 4479 03:11:48,400 --> 03:11:50,920 USERS TO ACCESS GAINFUL 4480 03:11:50,920 --> 03:11:53,200 EMPLOYMENT AND ACCESS INCLUSIVE 4481 03:11:53,200 --> 03:11:56,280 EMPLOYMENT IN K-12 TO HAVE EQUAL 4482 03:11:56,280 --> 03:11:57,600 ACCESS TO HEALTH CARE AND 4483 03:11:57,600 --> 03:12:00,720 COMMUNITY LIVING AND 4484 03:12:00,720 --> 03:12:03,880 COMMUNITY-BASED SERVICE AND 4485 03:12:03,880 --> 03:12:04,280 SUPPORT SYSTEMS. 4486 03:12:04,280 --> 03:12:05,960 WE NEED TO GROW THE LITERATURE 4487 03:12:05,960 --> 03:12:08,160 BASE TO MAKE IT BROADER AND HAVE 4488 03:12:08,160 --> 03:12:10,600 FEDERAL POLICIES AND PRACTICES 4489 03:12:10,600 --> 03:12:11,680 THAT ALIGN AND EMPHASIZE 4490 03:12:11,680 --> 03:12:13,960 COMMUNICATION FIRST AND 4491 03:12:13,960 --> 03:12:17,560 EMPOWERMENTS AND HOW THIS 4492 03:12:17,560 --> 03:12:19,480 CROSS-CONNECTS TO FOR INSTANCE 4493 03:12:19,480 --> 03:12:20,560 OR EMPHASIS IN THE FEDERAL 4494 03:12:20,560 --> 03:12:23,200 GOVERNMENT ON DIVERSITY, 4495 03:12:23,200 --> 03:12:25,120 INCLUSION AND ACCESSIBILITY AND 4496 03:12:25,120 --> 03:12:26,280 EXECUTIVE ORDERS THAT HAVE COME 4497 03:12:26,280 --> 03:12:26,440 OUT. 4498 03:12:26,440 --> 03:12:31,880 THEY'RE IN ALIGNMENT. 4499 03:12:31,880 --> 03:12:34,280 I LOOK FORWARD AND MAYBE 4500 03:12:34,280 --> 03:12:41,280 COLLABORATORS AND SISTER 4501 03:12:41,280 --> 03:12:42,760 AGENCIES CAN COMBINE HOW TO MAKE 4502 03:12:42,760 --> 03:12:44,280 POLICY AND PRACTICE ADJUSTMENTS 4503 03:12:44,280 --> 03:12:47,480 TO REDUCED BA BARRIERS TO ACCESS 4504 03:12:47,480 --> 03:12:51,080 FOR AAC FOLKS AND MAKE SURE 4505 03:12:51,080 --> 03:12:51,760 THERE'S BETTER OPPORTUNITIES AND 4506 03:12:51,760 --> 03:12:53,880 WHAT TARGETED FUNDING AND 4507 03:12:53,880 --> 03:12:56,080 RESOURCES COULD BE USED TO 4508 03:12:56,080 --> 03:12:57,240 ENHANCE THIS FOCUS IN LINE WITH 4509 03:12:57,240 --> 03:12:59,080 THE VALUES WE HAVE. 4510 03:12:59,080 --> 03:13:00,760 I WOULD SAY UNDER THE AUTISM 4511 03:13:00,760 --> 03:13:08,240 CARES ACT WHERE FOLKS HAVE WHAT 4512 03:13:08,240 --> 03:13:09,480 THEY NEED TO THRIVE IN 4513 03:13:09,480 --> 03:13:11,240 ADOLESCENTS AND ADULTS. 4514 03:13:11,240 --> 03:13:12,480 THAT SHOULD BE A RECOGNIZED 4515 03:13:12,480 --> 03:13:16,120 RIGHT AS QUALITY OF LIFE AND A 4516 03:13:16,120 --> 03:13:17,480 MAJOR PRIORITY FOR AUTISTIC 4517 03:13:17,480 --> 03:13:17,720 PEOPLE. 4518 03:13:17,720 --> 03:13:23,320 I'M GLAD WE'RE DISCUSSING THIS 4519 03:13:23,320 --> 03:13:23,520 TODAY. 4520 03:13:23,520 --> 03:13:25,560 BY THE WAY, IT'S GOOD TO SEE 4521 03:13:25,560 --> 03:13:26,720 YOU. 4522 03:13:26,720 --> 03:13:28,920 I'M BIASSED BECAUSE I'M ALUM AT 4523 03:13:28,920 --> 03:13:32,000 PENN STATE SO IT'S GREAT TO SEE 4524 03:13:32,000 --> 03:13:34,800 PENN STATE TRAILBLAZING WITH THE 4525 03:13:34,800 --> 03:13:36,760 AAC RESEARCH AND THE OTHER 4526 03:13:36,760 --> 03:13:37,600 PRESENTATIONS HERE ON THE 4527 03:13:37,600 --> 03:13:40,920 RESEARCH AND LIVED EXPERIENCE. 4528 03:13:40,920 --> 03:13:41,280 THANK YOU. 4529 03:13:41,280 --> 03:13:42,680 >> THANK YOU, SCOTT. 4530 03:13:42,680 --> 03:13:45,720 WE HAVE THREE MORE PEOPLE 4531 03:13:45,720 --> 03:13:47,080 WAITING TO COMMENT. 4532 03:13:47,080 --> 03:13:49,200 TWO MORE PEOPLE BUT ONE OF THE 4533 03:13:49,200 --> 03:13:52,040 SPEAKERS RAISED HER HAND, 4534 03:13:52,040 --> 03:13:52,280 BENITA. 4535 03:13:52,280 --> 03:13:53,760 MS. SHAW WOULD YOU WANT TO 4536 03:13:53,760 --> 03:13:56,760 RESPOND? 4537 03:13:56,760 --> 03:13:58,440 >> I KNOW I LEFT A LOT OUT 4538 03:13:58,440 --> 03:14:00,880 BECAUSE I WAS VERY EMOTIONAL, 4539 03:14:00,880 --> 03:14:02,800 SORRY, I'M ASKING FOR 4540 03:14:02,800 --> 03:14:04,200 FORGIVENESS FOR THAT BUT 4541 03:14:04,200 --> 03:14:06,040 CHRISTOPHER HAD DIFFERENT 4542 03:14:06,040 --> 03:14:09,520 DEVICES THEY SPOKE ABOUT TODAY. 4543 03:14:09,520 --> 03:14:13,440 AND A COUPLE PROGRAMS WERE 4544 03:14:13,440 --> 03:14:16,120 PROLOGO 2 AND TOUCH CAT AND I 4545 03:14:16,120 --> 03:14:17,440 WILL SAY I THINK A LOT OF THE 4546 03:14:17,440 --> 03:14:18,480 CHALLENGES WERE THE CONNECTION 4547 03:14:18,480 --> 03:14:19,840 OF PEOPLE HAVING TRAINING FOR 4548 03:14:19,840 --> 03:14:21,160 THE TECHNOLOGY. 4549 03:14:21,160 --> 03:14:25,560 HAVE YOU THE SPEECH PATHOLOGISTS 4550 03:14:25,560 --> 03:14:32,720 AND DURING THE WEEK IT WAS NEVER 4551 03:14:32,720 --> 03:14:34,480 COLLABORATIVE NOR CURRICULUM AND 4552 03:14:34,480 --> 03:14:36,600 TEACHER AND HAVING THE LACK OF 4553 03:14:36,600 --> 03:14:40,480 TRAINING AND INCLUDING THE 4554 03:14:40,480 --> 03:14:41,960 TECHNOLOGY I THINK WAS ALSO WAS 4555 03:14:41,960 --> 03:14:43,480 A FALL TO THE EDUCATIONAL 4556 03:14:43,480 --> 03:14:43,720 SYSTEM. 4557 03:14:43,720 --> 03:14:46,000 WHEN I THINK OF THINGS IF I HAD 4558 03:14:46,000 --> 03:14:47,360 TO SHARE WHAT WAS MOST NOW THAT 4559 03:14:47,360 --> 03:14:49,600 I'M NO LONGER EMOTIONAL, IT'S 4560 03:14:49,600 --> 03:14:51,200 IMPORTANT THERE WAS NO 4561 03:14:51,200 --> 03:14:53,520 CONNECTION IN REGARDS TO, I 4562 03:14:53,520 --> 03:14:54,680 FELT, ADVOCATING FOR MY SON 4563 03:14:54,680 --> 03:14:59,160 BECAUSE HE COMMUNICATED WITH A 4564 03:14:59,160 --> 03:15:09,520 DEVICE AS FAR AS BOOKS, AS FAR 4565 03:15:09,520 --> 03:15:11,360 AS TANGIBLE THINGS AND WE NEED 4566 03:15:11,360 --> 03:15:15,040 TO LOOK TO THE EDUCATIONAL 4567 03:15:15,040 --> 03:15:16,480 SYSTEM FOR THOSE WHO USE THE 4568 03:15:16,480 --> 03:15:19,080 DEVICE AND IT'S IMPORTANT TO 4569 03:15:19,080 --> 03:15:21,120 SHARE HE DID HAVE DIFFERENT 4570 03:15:21,120 --> 03:15:24,720 DEVICES HE USED AND IS USING 4571 03:15:24,720 --> 03:15:26,080 CURRENTLY AND ALSO IN A LITERACY 4572 03:15:26,080 --> 03:15:27,320 PROGRAM NOW. 4573 03:15:27,320 --> 03:15:28,720 >> THANK YOU FOR SHARING THAT 4574 03:15:28,720 --> 03:15:29,080 ADDITIONALLY. 4575 03:15:29,080 --> 03:15:32,480 YOU DO NOT HAVE TO APOLOGIZE. 4576 03:15:32,480 --> 03:15:36,720 YOU'VE BEEN A REMARKABLE HELP TO 4577 03:15:36,720 --> 03:15:37,240 THIS COMMITTEE IN YOUR 4578 03:15:37,240 --> 03:15:41,120 CONVERSATION. 4579 03:15:41,120 --> 03:15:41,720 NEXT WE HAVE ANOTHER COMMENT 4580 03:15:41,720 --> 03:15:51,800 STEVE WILL LEAD FOR US. 4581 03:15:51,800 --> 03:15:53,320 I HAVE TWO COMMENTS. 4582 03:15:53,320 --> 03:15:56,880 >> ONE FROM DENA. 4583 03:15:56,880 --> 03:16:00,080 AAC IS NOT MUCH USE AT TIMES BUT 4584 03:16:00,080 --> 03:16:01,080 STILL ACCEPTED TO COMMUNICATE 4585 03:16:01,080 --> 03:16:01,960 FLUENTLY. 4586 03:16:01,960 --> 03:16:03,920 THIS IS NOT UNDERSTOOD. 4587 03:16:03,920 --> 03:16:05,160 DO TYPICAL PEOPLE NOT CHOKE UP 4588 03:16:05,160 --> 03:16:06,680 WHEN THEY CRY AND HAVE A HARD 4589 03:16:06,680 --> 03:16:09,960 TIME FORMING SENTENCES AND WORDS 4590 03:16:09,960 --> 03:16:10,600 DURING THAT? 4591 03:16:10,600 --> 03:16:17,480 THE SECOND COMMENT IS FROM SAM, 4592 03:16:17,480 --> 03:16:21,520 I'D LIKE TO NOTE THERE'S OFTEN 4593 03:16:21,520 --> 03:16:23,040 LIMIT 4594 03:16:23,040 --> 03:16:24,040 LIMITED COVERAGE AAC DEVICES AND 4595 03:16:24,040 --> 03:16:28,200 THIS IS A POLICY WE NEED TO 4596 03:16:28,200 --> 03:16:28,480 ADDRESS. 4597 03:16:28,480 --> 03:16:29,600 >> THANK YOU FOR BOTH COMMENTS 4598 03:16:29,600 --> 03:16:31,760 AND I'LL RESPOND QUICKLY TO 4599 03:16:31,760 --> 03:16:35,840 SAM'S COMMENT IT'S ONE OF THE 4600 03:16:35,840 --> 03:16:37,680 REASONS WHY THE SUGGESTION WAS 4601 03:16:37,680 --> 03:16:41,360 FOR RANDOMIZED CONTROL TRIALS. 4602 03:16:41,360 --> 03:16:43,680 THOSE ARE TYPICALLY THE 4603 03:16:43,680 --> 03:16:45,480 OCCURRENCE WITH WHICH INSURANCE 4604 03:16:45,480 --> 03:16:46,880 PROVIDERS AND OTHERS INCLUDING 4605 03:16:46,880 --> 03:16:48,720 MEDICARE AND MEDICAID AGREED TO 4606 03:16:48,720 --> 03:16:51,840 PAY FOR SERVICES. 4607 03:16:51,840 --> 03:16:53,560 FOR OUR FINAL COMMENT OR 4608 03:16:53,560 --> 03:16:57,400 QUESTION, WE'LL CALL ON THE 4609 03:16:57,400 --> 03:17:03,240 SEGMENT WE'LL CALL ON JALYNN 4610 03:17:03,240 --> 03:17:03,480 PRINCE. 4611 03:17:03,480 --> 03:17:05,160 >> THANK YOU VERY MUCH. 4612 03:17:05,160 --> 03:17:07,000 WHEN OUR SON WAS 14 HE CAME TO A 4613 03:17:07,000 --> 03:17:08,360 POINT WHERE HIS COMMUNICATION 4614 03:17:08,360 --> 03:17:10,480 WAS EXTREMELY CHALLENGING FOR 4615 03:17:10,480 --> 03:17:10,880 HIM. 4616 03:17:10,880 --> 03:17:12,040 AND PRIOR TO THAT POINT THERE 4617 03:17:12,040 --> 03:17:14,720 WERE A COUPLE OF CATCHPHRASES 4618 03:17:14,720 --> 03:17:16,080 THE SCHOOL KEPT USING. 4619 03:17:16,080 --> 03:17:18,560 HE'S IN A LANGUAGE RICH 4620 03:17:18,560 --> 03:17:18,840 ENVIRONMENT. 4621 03:17:18,840 --> 03:17:20,200 WHICH REALLY DIDN'T MEAN A WHOLE 4622 03:17:20,200 --> 03:17:21,560 LOT TO HIM. 4623 03:17:21,560 --> 03:17:26,080 HE COULD HAVE USED SO MUCH MORE 4624 03:17:26,080 --> 03:17:28,840 TO GET HIM TO A POINT OF 4625 03:17:28,840 --> 03:17:29,200 COMMUNICATION. 4626 03:17:29,200 --> 03:17:31,840 THERE WAS A CRISIS THAT HAPPENED 4627 03:17:31,840 --> 03:17:35,520 IN HIS LIFE WHEN WE MOVED A 4628 03:17:35,520 --> 03:17:36,760 COUPLE BLOCKS AWAY HE COULD 4629 03:17:36,760 --> 03:17:38,560 COMMUNICATE ABOUT THOSE ISSUES. 4630 03:17:38,560 --> 03:17:41,240 AND HE WENT IN TO A SITUATION 4631 03:17:41,240 --> 03:17:42,760 WHERE HE COULD NOT ATTEND SCHOOL 4632 03:17:42,760 --> 03:17:45,800 FOR 18 MONTHS AND HAD TO BE 4633 03:17:45,800 --> 03:17:46,720 SCHOOLED AT HOME. 4634 03:17:46,720 --> 03:17:51,680 IT GOT TO BE SO EXTREME HE WAS 4635 03:17:51,680 --> 03:17:52,760 PULLING BASEBALL SIZED BLOCKS OF 4636 03:17:52,760 --> 03:17:55,360 HAIR FROM HIS HEAD BECAUSE HE 4637 03:17:55,360 --> 03:17:57,600 WAS SO FRUSTRATED ABOUT NOT 4638 03:17:57,600 --> 03:18:04,440 BEING ABLE TO EXPRESS THE THINGS 4639 03:18:04,680 --> 03:18:05,480 HE NEEDED. 4640 03:18:05,480 --> 03:18:07,560 IT WAS THE FIRST TIME HE WAS 4641 03:18:07,560 --> 03:18:09,280 REQUIRED TO TAKE MEDICATION TO 4642 03:18:09,280 --> 03:18:10,280 MODULATE WHAT HE WANTED TO BE 4643 03:18:10,280 --> 03:18:12,040 AND BE WHO HE WANTED TO BE WHICH 4644 03:18:12,040 --> 03:18:15,200 SET A WHOLE PATH OF OTHER THINGS 4645 03:18:15,200 --> 03:18:17,560 WITH WEIGHT GAIN AND SO FORTH 4646 03:18:17,560 --> 03:18:21,560 IT. GOES DOWN A HUGE PATH. 4647 03:18:21,560 --> 03:18:28,560 I WONDER MORE ABOUT HOW SPEECH 4648 03:18:28,560 --> 03:18:30,800 AND HELPING US WITH OTHER 4649 03:18:30,800 --> 03:18:32,200 EDUCATIONAL POSSIBILITIES CAN 4650 03:18:32,200 --> 03:18:33,640 ENHANCE THINGS? 4651 03:18:33,640 --> 03:18:39,520 WE WANTED TO CONTINUE FOR HIM AT 4652 03:18:39,520 --> 03:18:46,480 AGE 33 NOW CONTINUING SPEECH 4653 03:18:46,480 --> 03:18:49,280 CLASSES AND IN THE 4654 03:18:49,280 --> 03:18:50,760 WASHINGTON-BALTIMORE ONLY TWO 4655 03:18:50,760 --> 03:18:51,920 SPEECH PATHOLOGISTS WOULD EVEN 4656 03:18:51,920 --> 03:18:53,160 CONSIDER WORKING WITH AN ADULT. 4657 03:18:53,160 --> 03:18:55,120 ONE ENDED UP STARTING A FAMILY 4658 03:18:55,120 --> 03:18:57,280 AND IS NO LONGER INSTRUCTING AND 4659 03:18:57,280 --> 03:19:00,760 THE OTHER DECIDED SHE ONLY 4660 03:19:00,760 --> 03:19:04,920 WANTED TO WORK WITH CHILDREN. 4661 03:19:04,920 --> 03:19:08,840 SOW THE DEARTH OF POSSIBILITIES 4662 03:19:08,840 --> 03:19:10,000 TO CONTINUE LEARNING OR IMPROVE 4663 03:19:10,000 --> 03:19:12,160 THE STATE OF LANGUAGE THEY HAVE 4664 03:19:12,160 --> 03:19:15,560 IS EXTREMELY LIMITED AND THERE'S 4665 03:19:15,560 --> 03:19:17,280 SUCH A NEED FOR SUPPORT FOR 4666 03:19:17,280 --> 03:19:17,840 ADULTS BECAUSE IT DOES NOT 4667 03:19:17,840 --> 03:19:23,280 EXIST. 4668 03:19:23,280 --> 03:19:25,600 >> THANK YOU FOR THAT AND THOUGH 4669 03:19:25,600 --> 03:19:29,000 I SAID THAT WAS THE FINAL ONE, I 4670 03:19:29,000 --> 03:19:30,800 SEE SAM CRANE TO HAVE THE FINAL 4671 03:19:30,800 --> 03:19:32,880 WORD IN THE SEGMENT. 4672 03:19:32,880 --> 03:19:34,200 >> WHILE I ALSO SUPPORT THE 4673 03:19:34,200 --> 03:19:39,680 NECESSITY OF RANDOMIZED CONTROL 4674 03:19:39,680 --> 03:19:43,280 TRIALS, IT'S NOT ALWAYS THE 4675 03:19:43,280 --> 03:19:44,640 PREREQUISITE FOR COVERAGE OF 4676 03:19:44,640 --> 03:19:47,400 DURABLE MEDICAL EQUIPMENT WHICH 4677 03:19:47,400 --> 03:19:51,080 AAC WOULD CLASSIFIED UNDER. 4678 03:19:51,080 --> 03:19:52,040 WE RARELY SEE INSURANCE 4679 03:19:52,040 --> 03:19:53,640 COMPANIES REQUIRING RANDOMIZED 4680 03:19:53,640 --> 03:19:56,280 CONTROL TRIALS OF WHEEL CHAIRS 4681 03:19:56,280 --> 03:19:59,080 BEFORE COVERING WHEELCHAIRS FOR 4682 03:19:59,080 --> 03:20:00,760 PEOPLE WHO NEED THEM. 4683 03:20:00,760 --> 03:20:03,480 IT'S BOTH A POLICY AND 4684 03:20:03,480 --> 03:20:04,360 SCIENTIFIC ISSUE. 4685 03:20:04,360 --> 03:20:04,880 >> FAIR ENOUGH. 4686 03:20:04,880 --> 03:20:06,760 THANK YOU, SAM. 4687 03:20:06,760 --> 03:20:10,280 SORRY, I HAVE TO -- I'LL TAKE 4688 03:20:10,280 --> 03:20:16,000 ONE MORE, ALICIA. 4689 03:20:16,000 --> 03:20:17,120 >> IT'S OKAY. 4690 03:20:17,120 --> 03:20:20,360 I JUST WANTED TO POINT OUT WE'RE 4691 03:20:20,360 --> 03:20:23,280 TALKING ABOUT INTERVENTIONS HERE 4692 03:20:23,280 --> 03:20:26,280 IN STEAD OF DURABLE MEDICAL 4693 03:20:26,280 --> 03:20:26,840 EQUIPMENT. 4694 03:20:26,840 --> 03:20:30,800 AGAIN WE'RE MIXING TOGETHER 4695 03:20:30,800 --> 03:20:32,640 INTERVENTIONS DELIVERED THROUGH 4696 03:20:32,640 --> 03:20:34,840 AC RATHER THAN JUST PROVIDING AN 4697 03:20:34,840 --> 03:20:41,160 iPAD OR PROVIDING SOMETHING. 4698 03:20:41,160 --> 03:20:42,800 THERE'S STILL SOME QUESTION 4699 03:20:42,800 --> 03:20:45,640 ABOUT THE ROLE OF INTERVENTIONS 4700 03:20:45,640 --> 03:20:49,440 AND INTERVENTIONS AND HOW THAT 4701 03:20:49,440 --> 03:20:51,480 OCCURS AND WE JUST HEARD 4702 03:20:51,480 --> 03:20:52,240 BEHAVIORAL INTERVENTIONS ARE 4703 03:20:52,240 --> 03:20:53,080 NECESSARY FOR THAT. 4704 03:20:53,080 --> 03:20:55,240 I WANT TO MAKE SURE THAT WHEN WE 4705 03:20:55,240 --> 03:20:57,040 USE THE WORD AAC WE'RE VERY 4706 03:20:57,040 --> 03:20:59,240 SPECIFIC ABOUT WHAT WE'RE 4707 03:20:59,240 --> 03:20:59,600 TALKING ABOUT. 4708 03:20:59,600 --> 03:21:01,600 >> THANK YOU FOR THAT. 4709 03:21:01,600 --> 03:21:05,320 I THINK WE CAN ALL APPRECIATE 4710 03:21:05,320 --> 03:21:07,120 THE CHALLENGES HERE OF ENSURING 4711 03:21:07,120 --> 03:21:08,880 WE HAVE SUFFICIENT EVIDENCE AND 4712 03:21:08,880 --> 03:21:10,240 KNOW WE'RE DOING THE RIGHT THING 4713 03:21:10,240 --> 03:21:15,480 AND AT THE SAME TIME ADVOCATING 4714 03:21:15,480 --> 03:21:18,760 TO MAKE SURE THE PROCEDURES, 4715 03:21:18,760 --> 03:21:23,320 DEVICES, THERAPIES NEEDED TO BE 4716 03:21:23,320 --> 03:21:26,760 ABLE TO ASSIST INDIVIDUALS TO 4717 03:21:26,760 --> 03:21:30,080 MAXIMIZE THEIR COMMUNICATIVE 4718 03:21:30,080 --> 03:21:31,280 ABILITIES ARE AVAILABLE. 4719 03:21:31,280 --> 03:21:33,880 THANK YOU TO ALL THE SPEAKERS. 4720 03:21:33,880 --> 03:21:35,520 A WONDERFUL SERIES OF 4721 03:21:35,520 --> 03:21:41,640 PRESENTATIONS BY THE SCIENTISTS. 4722 03:21:41,640 --> 03:21:54,800 QUITE EVOKATIIVIVIVIVE -- EEVOKE 4723 03:21:54,800 --> 03:21:56,320 THOUGHTS AND MANY HAVE MADE 4724 03:21:56,320 --> 03:21:57,240 VALUABLE CONTRIBUTION TO THE 4725 03:21:57,240 --> 03:22:00,080 IACC AND CONTINUE TO DO SO AND 4726 03:22:00,080 --> 03:22:01,200 WE APPRECIATE THEIR 4727 03:22:01,200 --> 03:22:01,520 PARTICIPATION. 4728 03:22:01,520 --> 03:22:04,160 AND I'LL POINT OUT AVID 4729 03:22:04,160 --> 03:22:05,240 LISTENERS AND SOME TIME 4730 03:22:05,240 --> 03:22:10,080 PARTICIPANTS TO THIS GROUP YOU 4731 03:22:10,080 --> 03:22:12,920 ALREADY HEARD FROM AND 4732 03:22:12,920 --> 03:22:14,480 INSTITUTES WOULD SUPPORT THIS 4733 03:22:14,480 --> 03:22:15,440 RESEARCH AND LISTENING BEHIND 4734 03:22:15,440 --> 03:22:17,480 THE SCENES YOU MAY NOT BE AWARE 4735 03:22:17,480 --> 03:22:18,440 OF ARE PROGRAM STAFF THAT 4736 03:22:18,440 --> 03:22:20,560 DEVELOPED THE PROGRAMS AND I 4737 03:22:20,560 --> 03:22:23,600 KNOW THAT THESE CONVERSATIONS 4738 03:22:23,600 --> 03:22:24,840 WILL INFLUENCE THEM AND YOU ALSO 4739 03:22:24,840 --> 03:22:26,880 HEARD THAT MANY OF THE FEDERAL 4740 03:22:26,880 --> 03:22:28,400 PARTNERS HERE ARE DEEPLY 4741 03:22:28,400 --> 03:22:32,680 INTERESTED IN THESE INPUTS TO 4742 03:22:32,680 --> 03:22:34,000 MAKE SURE BARRIERS AND 4743 03:22:34,000 --> 03:22:36,480 COLLABORATE ACROSS AGENCIES TO 4744 03:22:36,480 --> 03:22:39,680 ENCOURAGE THE DEVELOPMENT AND 4745 03:22:39,680 --> 03:22:42,480 USE OF THESE KINDS OF TOOLS 4746 03:22:42,480 --> 03:22:44,080 ACROSS THE FEDERAL GOVERNMENT. 4747 03:22:44,080 --> 03:22:47,480 THANK YOU VERY MUCH FOR YOUR 4748 03:22:47,480 --> 03:22:48,400 PARTICIPATION. 4749 03:22:48,400 --> 03:22:54,320 WE HAVE NOW UNFORTUNATELY RAN 4750 03:22:54,320 --> 03:22:55,600 RIGHT THROUGH WHAT WAS TO BE A 4751 03:22:55,600 --> 03:22:58,840 BRIEF BREAK AND I KNOW IT'S 4752 03:22:58,840 --> 03:23:00,680 DIFFICULT TO SIT THROUGH A LONG 4753 03:23:00,680 --> 03:23:02,120 MEETING SUCH AS THIS WITHOUT A 4754 03:23:02,120 --> 03:23:03,480 BREAK BUT AT THIS POINT I THINK 4755 03:23:03,480 --> 03:23:06,800 WHAT WE'LL DO IS GO INTO THE 4756 03:23:06,800 --> 03:23:08,960 ROUND ROBIN UPDATES. 4757 03:23:08,960 --> 03:23:11,160 WE WERE TO HAVE A BRIEF 4758 03:23:11,160 --> 03:23:15,440 CONSIDERATION OF THE SUMMARY 4759 03:23:15,440 --> 03:23:16,360 ADVANCES DISCUSSION OR 4760 03:23:16,360 --> 03:23:18,800 CONTINUATION FROM YESTERDAY BUT 4761 03:23:18,800 --> 03:23:21,440 GIVEN THE ENTHUSIASM AND 4762 03:23:21,440 --> 03:23:24,600 INTEREST IN THE PREVIOUS TOPIC I 4763 03:23:24,600 --> 03:23:28,560 MADE THE DECISION ON THE FLY TO 4764 03:23:28,560 --> 03:23:30,280 POSTPONE THAT SUMMARY OF 4765 03:23:30,280 --> 03:23:30,800 ADVANCES DISCUSSION AND 4766 03:23:30,800 --> 03:23:33,600 DR. DANIELS AND I WILL TRY TO 4767 03:23:33,600 --> 03:23:35,320 ACHANA 4768 03:23:35,320 --> 03:23:38,200 CHANGE -- ARRANGE A TIME WE CAN 4769 03:23:38,200 --> 03:23:40,200 GET TOGETHER TO PERHAPS IN A 4770 03:23:40,200 --> 03:23:45,560 BRIEF EXTRA SESSION BUT IN A 4771 03:23:45,560 --> 03:23:48,280 PUBLIC WAY TO DISCUSS THESE. 4772 03:23:48,280 --> 03:23:49,880 WE NOW GIVE THE OPPORTUNITY FOR 4773 03:23:49,880 --> 03:23:54,000 MEMBERS OF THE IACC TO MAKE 4774 03:23:54,000 --> 03:23:55,480 ANNOUNCEMENTS THEY'D LIKE IT 4775 03:23:55,480 --> 03:23:57,520 SHARE WITH MEMBERS AND GENERAL 4776 03:23:57,520 --> 03:23:58,160 PUBLIC. 4777 03:23:58,160 --> 03:24:00,040 WE WANT TO CELEBRATE THE 4778 03:24:00,040 --> 03:24:04,240 ACHIEVEMENTS OF IACC MEMBERS AND 4779 03:24:04,240 --> 03:24:05,920 ONE WONPOINTED OUT TO ME THIS 4780 03:24:05,920 --> 03:24:07,600 MORNING DR. ROBERTSON FROM THE 4781 03:24:07,600 --> 03:24:08,920 U.S. DEPARTMENT OF LABOR WAS 4782 03:24:08,920 --> 03:24:14,160 RECENTLY AWARDED THE HENRY 4783 03:24:14,160 --> 03:24:17,480 BISCARDI ACHIEVEMENT AWARD. 4784 03:24:17,480 --> 03:24:20,960 IT'S FOR EXEMPLARY LEADERS WHO 4785 03:24:20,960 --> 03:24:22,240 ADVANCE WORK TO EMPOWER 4786 03:24:22,240 --> 03:24:24,040 CHILDREN, YOUTH AND ADULTS WITH 4787 03:24:24,040 --> 03:24:25,600 DISABILITIES TO PROTECT THEIR 4788 03:24:25,600 --> 03:24:27,320 RIGHTS AND EXPAND ACCESS TO 4789 03:24:27,320 --> 03:24:29,560 SUPPORTS AND SERVICES. 4790 03:24:29,560 --> 03:24:31,280 SCOTT IS ONE OF THE FIRST TWO 4791 03:24:31,280 --> 03:24:33,480 AUTISTIC PERSONS TO RECEIVE THIS 4792 03:24:33,480 --> 03:24:34,840 INTERNATIONAL AWARD SINCE ITS 4793 03:24:34,840 --> 03:24:37,600 INCEPTION IN 2013. 4794 03:24:37,600 --> 03:24:38,520 CONGRATULATIONS SCOTT. 4795 03:24:38,520 --> 03:24:40,840 YOU'VE BEEN A VALUABLE MEMBER OF 4796 03:24:40,840 --> 03:24:43,600 THE IACC AND WE'RE PLEASED 4797 03:24:43,600 --> 03:24:44,680 YOU'VE RECEIVED THIS 4798 03:24:44,680 --> 03:24:44,960 RECOGNITION. 4799 03:24:44,960 --> 03:24:46,080 >> THANK YOU, DR. GORDON, I 4800 03:24:46,080 --> 03:24:47,000 APPRECIATE THAT. 4801 03:24:47,000 --> 03:24:50,800 >> I'LL TURN IT OVER TO SUSAN TO 4802 03:24:50,800 --> 03:24:52,920 MODERATE THE ROUND ROBIN. 4803 03:24:52,920 --> 03:24:54,720 I BELIEVE SHE HAS AN 4804 03:24:54,720 --> 03:24:56,080 ANNOUNCEMENT FROM A MEMBER WHO 4805 03:24:56,080 --> 03:24:57,520 HAD TO LEAVE AND I SEE SEVERAL 4806 03:24:57,520 --> 03:25:00,080 MEMBERS RAISING THEIR HANDS TO 4807 03:25:00,080 --> 03:25:05,400 MAKE ANNOUNCEMENTS AND SUSAN 4808 03:25:05,400 --> 03:25:06,520 WILL CALL ON YOU. 4809 03:25:06,520 --> 03:25:08,680 >> THANK YOU TO THE PREVIOUS 4810 03:25:08,680 --> 03:25:08,880 PANEL. 4811 03:25:08,880 --> 03:25:12,720 WE APPRECIATE THE INPUT AND WHAT 4812 03:25:12,720 --> 03:25:15,440 YOU SHARED. 4813 03:25:15,440 --> 03:25:18,120 THANK YOU TO THOSE WHO HELPED 4814 03:25:18,120 --> 03:25:21,520 ORGANIZE THAT AND WE'LL CONTINUE 4815 03:25:21,520 --> 03:25:28,880 WORKING ON THAT TOPIC AND KNOW I 4816 03:25:28,880 --> 03:25:30,760 WANT TO SHARE AN ANNOUNCEMENT 4817 03:25:30,760 --> 03:25:33,280 FROM THE DEPARTMENT OF 4818 03:25:33,280 --> 03:25:33,520 EDUCATION. 4819 03:25:33,520 --> 03:25:36,600 LARRY WEXLER HAD IT LOG OFF AND 4820 03:25:36,600 --> 03:25:37,560 WANTED IT SHARE. 4821 03:25:37,560 --> 03:25:42,080 THERE'S A SUB MINIMUM WAGE TO 4822 03:25:42,080 --> 03:25:42,640 COMPETITIVE INTEGRATION 4823 03:25:42,640 --> 03:25:44,440 EMPLOYMENT PROJECT HE WANTED TO 4824 03:25:44,440 --> 03:25:46,560 SHARE AND SAID MARCH 21 THE 4825 03:25:46,560 --> 03:25:49,400 U.S. DEPARTMENT OF EDUCATION 4826 03:25:49,400 --> 03:25:50,680 REHAB SERVICES ADMINISTRATION 4827 03:25:50,680 --> 03:25:52,640 RELEASED THE NOTICE INVITING 4828 03:25:52,640 --> 03:25:55,480 APPLICATIONS FOR SUB MINIMUM 4829 03:25:55,480 --> 03:25:57,480 WAGE TO COMPETITIVE EMPLOYMENT 4830 03:25:57,480 --> 03:26:00,160 PROJECT AIMED AT INCREASING 4831 03:26:00,160 --> 03:26:01,560 ACCESS FOR PEOPLE WITH 4832 03:26:01,560 --> 03:26:02,840 DISABILITIES TO JOBS THAT PAY 4833 03:26:02,840 --> 03:26:03,800 GOOD WAGES. 4834 03:26:03,800 --> 03:26:05,560 THERE'S SEVERAL POINTS GIVEN THE 4835 03:26:05,560 --> 03:26:06,720 TIME. 4836 03:26:06,720 --> 03:26:10,440 WE'LL ADD THIS ALL TO THE ROUND 4837 03:26:10,440 --> 03:26:12,720 ROBIN DOCUMENT BUT AT THE BOTTOM 4838 03:26:12,720 --> 03:26:15,240 THERE'LL BE A PRE-APPLICATION 4839 03:26:15,240 --> 03:26:16,800 MEETING SPECIFIC TO THE 4840 03:26:16,800 --> 03:26:18,480 COMPETITION WEDNESDAY APRIL 20 4841 03:26:18,480 --> 03:26:20,840 NEXT WEEK AT 2:00 P.M. EASTERN 4842 03:26:20,840 --> 03:26:23,080 TIME TO RESPOND TO QUESTION. 4843 03:26:23,080 --> 03:26:26,800 YOU CAN CHECK RSA GRANT INFO FOR 4844 03:26:26,800 --> 03:26:27,880 MORE INFORMATION. 4845 03:26:27,880 --> 03:26:30,520 WE'LL PUT IT IN THE ROUND ROBIN 4846 03:26:30,520 --> 03:26:32,080 DOCUMENT AND IF YOU HAVE 4847 03:26:32,080 --> 03:26:34,280 QUESTION E-MAIL ME OR LARRY 4848 03:26:34,280 --> 03:26:36,480 WEXLER TO GET THE INFORMATION. 4849 03:26:36,480 --> 03:26:39,240 AND THE DEADLINE IS JUNE 21, 4850 03:26:39,240 --> 03:26:41,600 2022. 4851 03:26:41,600 --> 03:26:44,600 THANK YOU FOR THAT. 4852 03:26:44,600 --> 03:26:45,640 WE'LL TAKE A COMMENT FROM 4853 03:26:45,640 --> 03:26:54,760 ALLISON MARVIN. 4854 03:26:54,760 --> 03:26:56,280 >> I'M FROM THE SOCIAL SECURITY 4855 03:26:56,280 --> 03:26:56,680 ADMINISTRATION. 4856 03:26:56,680 --> 03:26:58,760 I WANTED TO ASK PEOPLE TO GO TO 4857 03:26:58,760 --> 03:27:01,160 THE MEETING MATERIALS TAB AND 4858 03:27:01,160 --> 03:27:03,000 THEN THE ROUND ROBIN DOCUMENTS 4859 03:27:03,000 --> 03:27:05,560 AND THE FEDERAL AGENCY PUBLIC 4860 03:27:05,560 --> 03:27:07,920 MEMBER COMMUNITY UPDATES 4861 03:27:07,920 --> 03:27:10,480 DOCUMENT FOR UPDATES BUT THEY 4862 03:27:10,480 --> 03:27:12,360 INCLUDE ADDITIONAL INFORMATION 4863 03:27:12,360 --> 03:27:13,840 RELATING TO TODAY'S RELEASE OF 4864 03:27:13,840 --> 03:27:18,720 THE FIRST EQUITY ACTION PLAN 4865 03:27:18,720 --> 03:27:22,840 WHICH I'D MENTIONED EARLIER 4866 03:27:22,840 --> 03:27:25,680 ADDING MORE IN-PERSON 4867 03:27:25,680 --> 03:27:29,640 APPOINTMENTS AND TO GET MORE GO 4868 03:27:29,640 --> 03:27:43,280 TO SSA.gov/CORONA VIRUS AND THE 4869 03:27:43,280 --> 03:27:46,440 I-CAT GRANT IS COMING SOON AND 4870 03:27:46,440 --> 03:27:48,080 FOR THE FUNDING OPPORTUNITY 4871 03:27:48,080 --> 03:27:49,600 APPLICATION PERIOD IS INCLUDED 4872 03:27:49,600 --> 03:27:51,360 IN THE DOCUMENT AND UNDER THE 4873 03:27:51,360 --> 03:27:53,600 ROUND ROBIN DOCUMENTS IS THE 4874 03:27:53,600 --> 03:27:56,520 DOCUMENT THAT CONTAINS SSA'S 4875 03:27:56,520 --> 03:27:58,760 RESPONSES TO THE ADDITIONAL 4876 03:27:58,760 --> 03:28:01,320 QUESTIONS TO THE PRESENTATION AT 4877 03:28:01,320 --> 03:28:02,040 THE LAST IACC MEETING. 4878 03:28:02,040 --> 03:28:05,600 THANK YOU SO MUCH. 4879 03:28:05,600 --> 03:28:11,720 >> THANK YOU. 4880 03:28:11,720 --> 03:28:14,640 NEXT AN UPDATE FROM ALICIA. 4881 03:28:14,640 --> 03:28:21,560 >> ASF IS COLLABORATING WITH 4882 03:28:21,560 --> 03:28:23,400 FOUNDATIONS AND INDIANA 4883 03:28:23,400 --> 03:28:24,800 UNIVERSITY ON NCATS FUNDED 4884 03:28:24,800 --> 03:28:25,040 PROJECT. 4885 03:28:25,040 --> 03:28:29,400 IT'S A TWO-DAY MEETING ON G.I. 4886 03:28:29,400 --> 03:28:32,280 ISSUE AND NEURO DEVELOPMENT 4887 03:28:32,280 --> 03:28:32,600 DISORDERS. 4888 03:28:32,600 --> 03:28:34,160 IN ADDITION TO THE TWO HALF DAYS 4889 03:28:34,160 --> 03:28:35,760 IN JUNE IT WILL BE JUNE 8 AND 9 4890 03:28:35,760 --> 03:28:38,920 AND A NUMBER OF PRESENTATIONS 4891 03:28:38,920 --> 03:28:41,280 LOOKING AT NOT JUST THE 4892 03:28:41,280 --> 03:28:43,800 ASSOCIATION BUT ALSO ABOUT 4893 03:28:43,800 --> 03:28:45,120 RECOMMENDATIONS INCLUDING 4894 03:28:45,120 --> 03:28:48,080 DIFFERENT OUTCOME MEASURES, 4895 03:28:48,080 --> 03:28:51,360 CONTINUING EDUCATION AND 4896 03:28:51,360 --> 03:28:53,200 EDUCATION OF PHYSICIANS AND BIO 4897 03:28:53,200 --> 03:28:53,600 BANK. 4898 03:28:53,600 --> 03:28:56,800 WE'RE ALSO CIRCULATING A SURVEY 4899 03:28:56,800 --> 03:29:01,280 WHETHER OR NOT YOU HAVE A RARE 4900 03:29:01,280 --> 03:29:03,560 GENETIC DISORDER IS IRRELEVANT 4901 03:29:03,560 --> 03:29:06,320 AND CAN FILL OUT THE SURVEY 4902 03:29:06,320 --> 03:29:09,800 ABOUT G.I. SYSTEMS. 4903 03:29:09,800 --> 03:29:23,120 THE WEBSITE IS WWW.CANDIDGI.COM. 4904 03:29:23,120 --> 03:29:24,600 WE ANNOUNCED OUR UNDERGRADUATE 4905 03:29:24,600 --> 03:29:26,240 RESEARCH FELLOWSHIPS WHICH CAN 4906 03:29:26,240 --> 03:29:29,160 BE FOUND ON OUR NEW WEBSITE AND 4907 03:29:29,160 --> 03:29:32,920 WE HAVE VIDEOS FROM THE MARCH 30 4908 03:29:32,920 --> 03:29:35,080 DAY OF LEARNING INCLUDING 4909 03:29:35,080 --> 03:29:35,760 PRESENTATIONS ON THE PREVALENCE 4910 03:29:35,760 --> 03:29:38,080 OF AUTISM MOBILE TECHNOLOGIES 4911 03:29:38,080 --> 03:29:40,280 FOR EARLY DETECTION AND 4912 03:29:40,280 --> 03:29:41,720 INTERVENTION AND THE IMPORTANCE 4913 03:29:41,720 --> 03:29:43,880 OF LEISURE ACTIVITY. 4914 03:29:43,880 --> 03:29:45,600 GO TO OUR WEBSITE TO SEE THAT. 4915 03:29:45,600 --> 03:29:51,520 >> THANK YOU. 4916 03:29:51,520 --> 03:29:53,480 NEXT, STEVEN, DO YOU HAVE 4917 03:29:53,480 --> 03:29:57,600 UPDATES TO SHARE ON BEHALF OF A 4918 03:29:57,600 --> 03:29:57,840 MEMBER? 4919 03:29:57,840 --> 03:30:15,240 >> YES, THANK YOU. 4920 03:30:15,240 --> 03:30:18,720 THERE'S AN AUTISM AWARENESS 4921 03:30:18,720 --> 03:30:20,520 MONTH APRIL 19 ON THE IMPORTANCE 4922 03:30:20,520 --> 03:30:21,920 OF RESEARCH ON PUBERTY AND 4923 03:30:21,920 --> 03:30:25,240 AUTISM AND THE DAY IS CALLED THE 4924 03:30:25,240 --> 03:30:29,640 INTERSECTION OF AUTISM OF 4925 03:30:29,640 --> 03:30:35,920 POVERTY AND RACIAL EQUITY. 4926 03:30:35,920 --> 03:30:37,360 AND IN RESPONSE TO THE INTEREST 4927 03:30:37,360 --> 03:30:39,440 OF HOUSING RESOURCES IN OUR 4928 03:30:39,440 --> 03:30:40,920 RESOURCES SECTION ON THE IACC 4929 03:30:40,920 --> 03:30:44,680 WEBSITE WE DO HAVE A NUMBER OF 4930 03:30:44,680 --> 03:30:49,480 ITEMS THAT WILL BE LISTED IN THE 4931 03:30:49,480 --> 03:30:50,600 ROUND ROBIN DOCUMENT ALONG WITH 4932 03:30:50,600 --> 03:30:55,480 THE LINK TO THE PRESENTATIONS. 4933 03:30:55,480 --> 03:30:57,080 >> THANK YOU, STEVEN AND I HAVE 4934 03:30:57,080 --> 03:31:00,480 A SLIDE ON THE HOUSING RESOURCES 4935 03:31:00,480 --> 03:31:01,640 PAGE IN CASE ANYONE IS 4936 03:31:01,640 --> 03:31:01,920 INTERESTED. 4937 03:31:01,920 --> 03:31:05,680 THANK YOU. 4938 03:31:05,680 --> 03:31:08,080 AMANDA. 4939 03:31:08,080 --> 03:31:12,760 >> THANK YOU. 4940 03:31:12,760 --> 03:31:19,880 IN ADDITION TO THE NO FOs IN THE 4941 03:31:19,880 --> 03:31:21,600 ROUND ROBIN REPORT I WANTED TO 4942 03:31:21,600 --> 03:31:23,680 LET YOU KNOW THE ADMINISTRATION 4943 03:31:23,680 --> 03:31:26,080 FOR COMMUNITY LIVING IS PLEASED 4944 03:31:26,080 --> 03:31:28,000 TO ANNOUNCE JILL JACOBS WAS 4945 03:31:28,000 --> 03:31:29,640 APPOINTED AS THE COMMISSIONER OF 4946 03:31:29,640 --> 03:31:30,080 THE ADMINISTRATION ON 4947 03:31:30,080 --> 03:31:33,640 DISABILITIES. 4948 03:31:33,640 --> 03:31:35,080 IN ADDITION TO HER PROFESSIONAL 4949 03:31:35,080 --> 03:31:37,760 EXPERIENCE OF MORE THAN TWO 4950 03:31:37,760 --> 03:31:42,280 DECADES AND VERY QUALIFIED, SHE 4951 03:31:42,280 --> 03:31:44,280 ALSO BRINGS EXTENSIVE LIVED 4952 03:31:44,280 --> 03:31:46,000 EXPERIENCE BOTH AS A PERSON WITH 4953 03:31:46,000 --> 03:31:51,680 A DISABILITY AND AS A MOTHER OF 4954 03:31:51,680 --> 03:31:53,480 TWO DISABLED ADULTS. 4955 03:31:53,480 --> 03:31:55,680 AS EXECUTIVE DIRECTOR OF 4956 03:31:55,680 --> 03:31:56,480 INDEPENDENT CENTER OF NORTHERN 4957 03:31:56,480 --> 03:31:58,360 VIRGINIA THE CENTER FOR 4958 03:31:58,360 --> 03:32:01,640 INDEPENDENT LIVING, SHE DRAFTED 4959 03:32:01,640 --> 03:32:03,280 AND SUCCESSFULLY ADVOCATED NOIR 4960 03:32:03,280 --> 03:32:06,680 PASSAGE OF TWO STATE LAWS THAT 4961 03:32:06,680 --> 03:32:07,480 EXPLICITLY UPHOLD THE CIVIL 4962 03:32:07,480 --> 03:32:09,200 RIGHTS OF PEOPLE WITH 4963 03:32:09,200 --> 03:32:09,520 DISABILITIES. 4964 03:32:09,520 --> 03:32:11,280 SHE DEVELOPED INNOVATIVE 4965 03:32:11,280 --> 03:32:12,800 APPROACHES TO PROVIDING SERVICES 4966 03:32:12,800 --> 03:32:15,680 AND SUPPORTS WITH TWO PEOPLE 4967 03:32:15,680 --> 03:32:24,840 WITH DISABILITIES DURING THE 4968 03:32:24,840 --> 03:32:26,840 COVID PANDEMIC AND SHE'S BEEN A 4969 03:32:26,840 --> 03:32:29,280 GRASSROOTS ORGANIZER FOR 4970 03:32:29,280 --> 03:32:30,040 DISABILITY ISSUES. 4971 03:32:30,040 --> 03:32:31,520 JUST WANTED TO MAKE YOU AWARE OF 4972 03:32:31,520 --> 03:32:33,000 THE GREAT NEW ADDITION TO THE 4973 03:32:33,000 --> 03:32:33,640 ACL. 4974 03:32:33,640 --> 03:32:38,400 >> THANK YOU SO MUCH. 4975 03:32:38,400 --> 03:32:42,680 >> SUSAN, I WONDER IF YOU CAN 4976 03:32:42,680 --> 03:32:43,800 REMIND EVERYBODY ABOUT THE EVENT 4977 03:32:43,800 --> 03:32:45,840 LATER IN THE MONTH. 4978 03:32:45,840 --> 03:32:49,640 >> I DO HAVE DETAILS. 4979 03:32:49,640 --> 03:32:51,920 I HAVE SLIDES PART OF THE 4980 03:32:51,920 --> 03:32:52,680 CLOSING REMARKS. 4981 03:32:52,680 --> 03:32:56,760 I DON'T KNOW THERE WERE OTHER 4982 03:32:56,760 --> 03:32:57,640 ROUND ROBIN UPDATE? 4983 03:32:57,640 --> 03:33:00,680 >> ANY OTHER UPDATES? 4984 03:33:00,680 --> 03:33:02,480 >> THIS IS DENA. 4985 03:33:02,480 --> 03:33:05,320 I'LL BE PRESENTING AT THE ASHA 4986 03:33:05,320 --> 03:33:11,760 CONFERENCE ON A PANEL AND I'M 4987 03:33:11,760 --> 03:33:13,600 PRESENT AND IF ANYONE IS ASHA 4988 03:33:13,600 --> 03:33:20,480 THEY CAN LOOK FOR ME. 4989 03:33:20,480 --> 03:33:21,280 >> THAT'S GREAT. 4990 03:33:21,280 --> 03:33:24,360 SUSAN, LET'S MOVE TO THE CLOSING 4991 03:33:24,360 --> 03:33:24,800 REMARKS. 4992 03:33:24,800 --> 03:33:26,840 >> WOULD YOU LIKE TO START US 4993 03:33:26,840 --> 03:33:29,560 OFF WITH REMARKS? 4994 03:33:29,560 --> 03:33:31,000 >> I WANT TO THANK EVERYONE FOR 4995 03:33:31,000 --> 03:33:33,760 THEIR WORK TODAY AND YESTERDAY. 4996 03:33:33,760 --> 03:33:35,160 IT'S BEEN A WONDERFUL MEETING. 4997 03:33:35,160 --> 03:33:38,320 WE LEARNED A LOT. 4998 03:33:38,320 --> 03:33:39,000 NOT WITHOUT A LITTLE CONTROVERSY 4999 03:33:39,000 --> 03:33:41,080 HERE AND THERE BUT WE LEARNED A 5000 03:33:41,080 --> 03:33:45,360 LOT AND WE TREATED EACH OTHER 5001 03:33:45,360 --> 03:33:46,160 WITH RESPECT. 5002 03:33:46,160 --> 03:33:48,120 WE ALSO HEARD FROM THE PUBLIC ON 5003 03:33:48,120 --> 03:33:51,160 A RANGE OF ISSUES AND GAVE FOOD 5004 03:33:51,160 --> 03:33:52,280 FOR THOUGHT FOR THE STRATEGIC 5005 03:33:52,280 --> 03:33:54,760 PLAN AND GAVE MEMBERS AROUND THE 5006 03:33:54,760 --> 03:33:56,640 STABLE WHO SUPPORT RESEARCH AND 5007 03:33:56,640 --> 03:33:58,760 CARE EFFORTS FOOD FOR THOUGHT 5008 03:33:58,760 --> 03:34:03,600 WITH REGARD TO THE VARIOUS 5009 03:34:03,600 --> 03:34:09,560 ISSUES DISCUSSED HOUSING AND 5010 03:34:09,560 --> 03:34:10,600 COMMUNICATION. 5011 03:34:10,600 --> 03:34:12,720 LET ME THANK SUSAN AND HER 5012 03:34:12,720 --> 03:34:14,600 ENTIRE TEAM FOR PUTTING TOGETHER 5013 03:34:14,600 --> 03:34:17,520 THE MEETING AND FOR ALL THE 5014 03:34:17,520 --> 03:34:18,600 INTERVENING WORK. 5015 03:34:18,600 --> 03:34:20,280 IT'S A WONDERFUL JOB BY THE IACC 5016 03:34:20,280 --> 03:34:22,680 STAFF AND SO I WANT TO THANK AND 5017 03:34:22,680 --> 03:34:24,880 RECOGNIZE THAT. 5018 03:34:24,880 --> 03:34:25,080 SUSAN. 5019 03:34:25,080 --> 03:34:26,720 >> THANK YOU. 5020 03:34:26,720 --> 03:34:28,680 >> YES, I'D LIKE TO ECHO WHAT 5021 03:34:28,680 --> 03:34:29,600 JOSH SAID. 5022 03:34:29,600 --> 03:34:32,480 IT'S BEEN A TERRIFIC MEETING. 5023 03:34:32,480 --> 03:34:36,320 WE REALLY APPRECIATE PEOPLE'S 5024 03:34:36,320 --> 03:34:37,280 THOUGHTFUL ENGAGEMENT ON ALL THE 5025 03:34:37,280 --> 03:34:42,200 ISSUES AND THE WORK WE DID WAS 5026 03:34:42,200 --> 03:34:43,280 TOWARDS THE COLLECTIVE VOICE 5027 03:34:43,280 --> 03:34:45,560 WHICH IS WHAT THE IACC IS ABOUT. 5028 03:34:45,560 --> 03:34:46,560 THANK YOU FOR YOUR EFFORTS AND 5029 03:34:46,560 --> 03:34:52,040 WE LOOK FORWARD TO THE NEXT 5030 03:34:52,040 --> 03:34:52,400 MEETING. 5031 03:34:52,400 --> 03:34:54,360 AS A REMINDER, SOME UPCOMING 5032 03:34:54,360 --> 03:34:56,000 ACTION ITEMS FOR THE COMMITTEE 5033 03:34:56,000 --> 03:34:57,600 ARE WITH THE SUMMARY OF ADVANCES 5034 03:34:57,600 --> 03:34:59,480 JOSH AND I WILL CONFER ON WHAT 5035 03:34:59,480 --> 03:35:04,280 WOULD BE THE BEST ROUTE TO TONG 5036 03:35:04,280 --> 03:35:06,240 REFINE THE 2021 IACC SUMMARY OF 5037 03:35:06,240 --> 03:35:07,760 ADVANCES LIST WHETHER WE WOULD 5038 03:35:07,760 --> 03:35:11,760 DO THAT BY E-MAIL OR NEED TO 5039 03:35:11,760 --> 03:35:12,680 CONVENE ADDITIONAL MEETINGS TO 5040 03:35:12,680 --> 03:35:14,880 COMPLETE THAT BUT WE WANT TO PUT 5041 03:35:14,880 --> 03:35:17,080 OUT THE DOCUMENT AS SOON AS 5042 03:35:17,080 --> 03:35:20,120 POSSIBLE AND BE KEEPING OUR EYES 5043 03:35:20,120 --> 03:35:21,720 OPEN FOR THE 2020 IACC SUMMARY 5044 03:35:21,720 --> 03:35:25,160 OF ADVANCE TO COME OUT IN MAY. 5045 03:35:25,160 --> 03:35:29,600 AND WE WILL BE ALSO SENDING TO 5046 03:35:29,600 --> 03:35:31,400 IACC MEMBERS A SURVEY ON THE 5047 03:35:31,400 --> 03:35:34,560 IACC MISSION VALUES AND 5048 03:35:34,560 --> 03:35:35,240 POLITICIAN. 5049 03:35:35,240 --> 03:35:38,480 AND PROVIDE A WAY TO PROVIDE 5050 03:35:38,480 --> 03:35:39,280 ADDITIONAL COMMENTS ON THE REST 5051 03:35:39,280 --> 03:35:40,760 OF THE STRATEGIC PLAN AS WE WANT 5052 03:35:40,760 --> 03:35:42,640 TO COLLECT ALL THAT INPUT ALONG 5053 03:35:42,640 --> 03:35:45,160 THE WAY SO WE CAN GET THE DRAFT 5054 03:35:45,160 --> 03:35:46,840 TO WHAT IT NEEDS TO BE. 5055 03:35:46,840 --> 03:35:49,800 SO WE WILL WELCOME THAT AND WILL 5056 03:35:49,800 --> 03:35:52,080 CERTAINLY SEND YOU MORE E-MAILS 5057 03:35:52,080 --> 03:35:54,680 WITH THE DETAILS. 5058 03:35:54,680 --> 03:35:56,000 THIS SUMMER WE WILL BE LOOKING 5059 03:35:56,000 --> 03:36:00,200 FOR GLOBAL SPEEDBACK ON THE 5060 03:36:00,200 --> 03:36:01,200 DRAFT OF THE IACC STRATEGIC PLAN 5061 03:36:01,200 --> 03:36:02,640 THAT WE'LL PRESENT TO YOU IN 5062 03:36:02,640 --> 03:36:04,640 EARLY JULY AND THE MEETING WE 5063 03:36:04,640 --> 03:36:06,680 HAVE SCHEDULED IS FOR JULY 13 5064 03:36:06,680 --> 03:36:07,160 AND 14. 5065 03:36:07,160 --> 03:36:08,320 IT WILL BE A VIRTUAL MEETING 5066 03:36:08,320 --> 03:36:11,720 SIMILAR TO THIS ONE BOTH 5067 03:36:11,720 --> 03:36:13,840 AFTERNOONS UNLESS WE DECIDE WE 5068 03:36:13,840 --> 03:36:17,400 DON'T NEED BOTH BUT WE'LL WORK 5069 03:36:17,400 --> 03:36:20,480 ON THAT AGENDA AND GET IT OUT TO 5070 03:36:20,480 --> 03:36:20,680 YOU. 5071 03:36:20,680 --> 03:36:21,640 THE NEXT FULL MEETING IS OCTOBER 5072 03:36:21,640 --> 03:36:27,080 22 -- 26. 5073 03:36:27,080 --> 03:36:29,160 FOR NOW IT'S VIRTUAL OUR HYBRID. 5074 03:36:29,160 --> 03:36:30,840 WE'LL LET YOU KNOW AS WE SEE HOW 5075 03:36:30,840 --> 03:36:31,560 THINGS PROGRESS. 5076 03:36:31,560 --> 03:36:35,600 A REMINDER TO JOIN US FOR THE 5077 03:36:35,600 --> 03:36:37,640 NIMHD SPECIAL EVENT IN ANIMATING 5078 03:36:37,640 --> 03:36:38,880 THE FUTURE FOR EXCEPTIONAL MINDS 5079 03:36:38,880 --> 03:36:40,560 AND THINK IT WILL BE AN 5080 03:36:40,560 --> 03:36:41,760 EXCEPTIONAL EVENT AND WE LOOK 5081 03:36:41,760 --> 03:36:45,640 FORWARD TO HAVING YOU THERE AND 5082 03:36:45,640 --> 03:36:46,840 WILL ALSO RECORD IT. 5083 03:36:46,840 --> 03:36:49,000 I'D ALSO LIKE TOE LET PEOPLE 5084 03:36:49,000 --> 03:36:53,560 KNOW YOU CAN TUNE IN FOR THE 5085 03:36:53,560 --> 03:36:56,840 NSAR ANNUAL MEETING IN SAN 5086 03:36:56,840 --> 03:36:59,720 ANTONIO, TEXAS AND WILL BE 5087 03:36:59,720 --> 03:37:00,320 AVAILABLE VIRTUALLY MAY 11 5088 03:37:00,320 --> 03:37:05,560 THROUGH 14 FOR THOSE WHO WANT 5089 03:37:05,560 --> 03:37:07,760 THE LATEST IN AUTISM RESEARCH 5090 03:37:07,760 --> 03:37:09,560 AND THERE'S AN AUTISM AT WORK 5091 03:37:09,560 --> 03:37:11,240 WORKSHOP MAY 16 THROUGH 18 YOU 5092 03:37:11,240 --> 03:37:11,960 MAY BE INTERESTED IN. 5093 03:37:11,960 --> 03:37:12,800 WE'VE ALSO PROVIDED THE LINK 5094 03:37:12,800 --> 03:37:18,280 THERE. 5095 03:37:18,280 --> 03:37:19,880 SO, THANK YOU SO MUCH FOR 5096 03:37:19,880 --> 03:37:22,720 EVERYTHING AND THANK YOU FOR THE 5097 03:37:22,720 --> 03:37:27,400 OARAC STAFF FOR THEIR WORK AND 5098 03:37:27,400 --> 03:37:29,080 THE SUPPORT TEAM THAT HELPED 5099 03:37:29,080 --> 03:37:30,200 WITH THE TECHNICAL SUPPORT FOR 5100 03:37:30,200 --> 03:37:30,840 THE MEETING. 5101 03:37:30,840 --> 03:37:32,080 WE APPRECIATE ALL YOUR EFFORTS. 5102 03:37:32,080 --> 03:37:32,520 THANK YOU SO MUCH. 5103 03:37:32,520 --> 03:37:33,840 WE LOOK FORWARD TO SEEING YOU 5104 03:37:33,840 --> 03:41:27,800 NEXT TIME.