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I WANT TO WELCOME MEMBERS OF THE

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COORDINATING COMMITTEE TO THE 

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INTERAGENCY AUTISM COORDINATING 

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COMMITTEE.

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THIS IS AVAILABLE PUBLICLY BY 

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NIH VIDEOCAST I WANT TO MAKE 

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SURE TO REMIND ALL OUR MEMBERS 

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THAT YOU WILL BE SPEAKING LIVE, 

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VIA THE WEB TO A LARGE AUDIENCE.

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WE'RE INTERESTED AND ENGAGED IN 

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WHAT WE HAVE TO SAY.

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I WANT TO WELCOME EVERYONE TO 

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THIS MEETING WHICH IS TAKING 

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PLACE AS IS OUR USUAL HABIT 

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DURING APRIL, AUTISM AWARENESS 

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MONTH.

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DURING THIS MONTH, WE RECOGNIZE 

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THAT WE NEED TO TAKE TIME TO 

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REFLECT ON AND INCREASING OUR 

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UNDERSTANDING OF INCLUSION AND 

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ACCEPTANCE OF AUTISTIC PEOPLE 

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AND FAMILIES AND TAKE ON 

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CHALLENGES FACED BY THE 

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INDIVIDUALS AND THE FAMILIES AND

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COMMUNITIES.

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IT IS ALSO A MONTH WHERE WE 

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CELEBRATE THE STRENGTHS, 

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ACCOMPLISHMENTS AND 

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CONTRIBUTIONS OF PEOPLE ON THE 

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AUTISM SPECTRUM AS WELL AS THEIR

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COMMUNITIES ACROSS THE GLOBE.

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IN THAT SPIRIT I WANT TO 

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ACKNOWLEDGE HAPPY UPDATES ABOUT 

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OUR COMMITTEE MEMBERS AND HOPE 

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TO MAKE IT A TRADITION TO 

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RECOGNIZE ACCOMPLISHMENTS OF 

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IACC MEMBERS.

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IF ANY HAVE SIMILAR ANNOUNCEMENT

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TO SHARE AT FUTURE MEETINGS LET 

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SUSAN AND THE IACC STAFF AND SAM

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CRANE WHO WAS THE LONG-TIME 

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DIRECTOR OF THE AUTISTIC NETWORK

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IS NOW AT THE COFFEE TRUST WITH 

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THE INDIVIDUALS WITH DISABILITY 

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IN WASHINGTON, D.C., 

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CONGRATULATIONS, SAM, IN YOUR 

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NEW POSITION.

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I'M PLEASED TO CONGRATULATE HARI

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A SENIOR AT CALIFORNIA BERKELEY.

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HE WAS RECENTLY ACCEPTED TO THE 

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VANDERBILT UNIVERSITY Ph.D. 

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PROGRAM IN NEUROSCIENCE AND 

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HAVING JUST VISITED LAST WEEK 

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AND RECEIVED HARI'S E-MAIL 

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SAYING HE WAS ACCEPTED WHILE I 

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WAS THERE I WAS ABLE TO CONVEY 

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TO THEM THE VANDERBILT TO HEAR 

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FROM THEM AND THE ENTHUSIASM AND

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HAS ALSO BEEN ACCEPTED AT THE 

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PAUL AND DAISY GRADUATE GRADUATE

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PROGRAM FOR IMMIGRANTS.

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RECIPIENTS ARE CHOSEN FROM A 

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POOL OF 1800 APPLICANTS.

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CONGRATULATIONS, HARI.

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AND AGAIN WE HOPE TO MAKE IT A 

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TRADITION AT FUTURE MEETINGS.

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TO GET ON TO THE MEAT OF THE 

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MEETING TODAY WE HAVE A LOT OF 

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THINGS TO LOOK FORWARD TO AND A 

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VARIETY OF PRESENTATIONS AND 

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HEAR UPDATES ABOUT HOUSING 

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PROGRAMS FROM THE DEPARTMENT OF 

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HOUSING AND URBAN DEVELOPMENT 

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AND THE ADMINISTRATION ON 

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COMMUNITY LIVING AND HEAR 

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REMARKS FROM DR. TARA SCHWETZ A 

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MEMBER OF THIS COMMITTEE AND 

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HEARING ON THE IACC STRATEGIC 

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PLAN AND THE 2021 SUMMARY OF 

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ADVANCES.

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TOMORROW THE MEETING WILL 

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CONTINUE AS WE'LL BE HEARING 

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FROM AND DISCUSSING PUBLIC 

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COMMENTS AND HEARING 

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PRESENTATIONS ABOUT THE DIVERSE 

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COMMUNICATION NEEDS OF 

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INDIVIDUALS ON THE AUTISM 

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SPECTRUM.

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ONCE AGAIN, I THANK ALL MEMBERS 

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OF THE COMMITTEE AND PUBLIC FOR 

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JOINING US TODAY AND I'LL TURN 

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IT OVER TO SUSAN FOR OPENING 

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REMARKS AND APPROVAL OF MINUTES 

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FROM THE JANUARY MEETING.

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SUSAN DANIELS.

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>> THANK YOU, JOSH.

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I WANT TO ECHO JOSH'S WELCOME 

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AND WELCOME PEOPLE VIEWING IN 

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OUR LISTENING AUDIENCE AROUND 

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THE COUNTRY AND AROUND THE WORLD

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AND TO OUR COMMITTEE MEMBERS AS 

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WE MARK AUTISM AWARENESS MONTH.

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AGAIN, IT'S A MONTH THAT WE 

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REAFFIRM OUR COMMITMENT TO 

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ACCEPTANCE, INCLUSION AND 

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EMPOWERMENT OF PEOPLE ON THE 

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AUTISM SPECTRUM AND ADDRESSING 

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CHALLENGES AND OPPORTUNITIES FOR

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INDIVIDUALS AND THEIR FAMILIES.

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LATER WE'LL HIGHLIGHT ACTIVITIES

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AND I ENCOURAGE YOU TO CHECK OUT

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THE WEB PAGE ON THE IACC WEBSITE

113
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FOR MORE INFORMATION ON THESE 

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AND OTHER ACTIVITIES SPONSORED 

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BY THE GOVERNMENT AGENCIES AS 

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WELL AS NONPROFITS AROUND THE 

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U.S. AND WORLDWIDE.

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WE WANT TO REMIND THE COMMITTEE 

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MEMBERS TO PLEASE KEEP YOUR 

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MICROPHONES OFF UNLESS SPEAKING 

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AND KEEP CAMERAS OFF DURING 

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PRESENTATIONS AND BREAKS.

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YOU'RE WELCOME TO TURN THEM ON 

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DURING COMMITTEE DISCUSSIONS AND

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IF YOU'D LIKE TO CONTRIBUTE A 

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WRITTEN COMMENT DURING 

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DISCUSSION PERIODS RAISE YOUR 

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HAND USING THE ZOOM RAISED HAND 

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FUNCTION AND LET US KNOW YOU'D 

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LIKE TO COMMENT AND THEN USE THE

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CHAT FEATURE TO SEND THE TEXT OF

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YOUR COMMENT TO SEND COMMENTS 

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HERE WE THOUGHT WOULD BE EASY 

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FOR EVERYONE AND WHEN IT'S YOUR 

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TURN TO BE RECOGNIZED THE OAC 

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STAFF MEMBER WILL READ YOUR 

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COMMENTS ON ZOOM.

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FOR THIS MEETING, MR. STEVEN 

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ISAACSON A MEMBER OF THE TEAM 

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WILL READ MEMBER COMMENTS SENT 

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THROUGH CHAT IN THE MEETING.

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NOW I'D LIKE TO CONTINUE WITH 

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THE APPROVAL OF THE MINUTES FROM

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THE JANUARY MEETING.

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I'D LIKE TO TAKE A MOMENT TO IS 

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COMMITTEE MEMBERS IF YOU HAVE 

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COMMENTS ON THE DRAFT MEETING 

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THAT WAS IN THE MEETING 

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MATERIALS.

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COMMENTS HAVE ALREADY BEEN 

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INCORPORATED.

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DOES ANYBODY HAVE ANYTHING THEY 

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NEED TO SECRETED OR UPDATES 

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YOU'D LIKE US TO MAKE?

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I'M NOT SEEING ANYTHING SO IF 

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THERE'S NO FURTHER DISCUSSION, 

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CAN I GET A MOTION ON THE FLOOR 

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TO APPROVE THE MINUTES?

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>> I'LL PUT A MOTION ON THE 

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FLOOR TO APPROVE THE MINUTES 

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FROM THE JANUARY MEETING.

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>> THANK YOU, DANA.

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>> I'LL SECOND.

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>> THANK YOU, DANA.

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ALL IN FAVOR PLEASE RAISE YOUR 

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HANDS IN ZOOM.

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THANK YOU.

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ARE THERE ANY OPPOSED TO 

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ACCEPTING THE MINUTES.

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PUT YOUR DOWN FROM THE PREVIOUS 

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AND IF THERE'S AN OPPOSED, LET 

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US KNOW.

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I THINK I HAVE TWO IPAD 4 WHICH 

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I DON'T KNOW WHO THAT IS.

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IVANOVA DO YOU HAVE SPECIFIC 

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CONCERNS ABOUT THE MINUTES THAT 

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NEED TO BE ADDRESSED?

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>> I THOUGHT THAT WAS TO APPROVE

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THE MINUTES.

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I APOLOGIZE.

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>> NO PROBLEM.

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AND IPAD 4 DID YOU HAVE ANYTHING

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YOU NEEDED CORRECTS IN THE 

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MINUTES?

185
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>> NO, I'M SORRY.

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THIS IS CRAIG JOHNSON.

187
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I'M USING A DIFFERENT IPAD TODAY

188
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SO SORRY ABOUT THAT.

189
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I'M GOOD.

190
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>> AND IS ANYONE ABSTAINING FROM

191
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THE APPROVAL OF THE MINUTES?

192
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THE MAJORITY APPROVE AND WE'LL 

193
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ACCEPT THE MINUTES AND POST THE 

194
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FINAL ONES TO THE WEBSITE AFTER 

195
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THE MEETING OR PROBABLY BY 

196
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TOMORROW.

197
00:08:01,040 --> 00:08:03,160
THANK YOU AND I TURN IT BACK 

198
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OVER TO JOSH.

199
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>> IT'S MY PLEASURE TO INTRODUCE

200
00:08:13,920 --> 00:08:17,720
DR. TARA SCHWETZ.

201
00:08:17,720 --> 00:08:19,560
SHE'S A PHYSICIST BY TRAINING 

202
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AND SERVED AT THE NATIONAL 

203
00:08:21,960 --> 00:08:23,520
INSTITUTES OF HEALTH AND THE 

204
00:08:23,520 --> 00:08:24,360
WHITE HOUSE OFFICE OF SCIENCE 

205
00:08:24,360 --> 00:08:26,360
AND TECHNOLOGY POLICY WHERE SHE 

206
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WAS THE ASSIST AND THE DIRECTOR 

207
00:08:27,600 --> 00:08:28,720
FOR BIOMEDICAL SCIENCE 

208
00:08:28,720 --> 00:08:29,000
INITIATIVES.

209
00:08:29,000 --> 00:08:31,560
SHE LED THE EFFORTS TO STAND UP 

210
00:08:31,560 --> 00:08:33,680
THE ADVANCED RESEARCH PROJECT 

211
00:08:33,680 --> 00:08:37,560
AGENCY FOR HEALTH OR ARPA-H.

212
00:08:37,560 --> 00:08:39,600
ON RETURNING TO NIH, WE'RE 

213
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PLEASED WHEN DR. SCHWETZ WAS 

214
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SELECTED TO FILL IN FOR 

215
00:08:43,560 --> 00:08:45,760
DR. LARRY TABAK THE DEPUTY 

216
00:08:45,760 --> 00:08:47,600
DIRECTOR OF NIH AND CURRENT 

217
00:08:47,600 --> 00:08:49,080
ACTING DIRECTOR OF THE NATIONAL 

218
00:08:49,080 --> 00:08:50,080
INSTITUTES OF HEALTH.

219
00:08:50,080 --> 00:08:53,760
DR. TABAK IS A MEMBER OF THE 

220
00:08:53,760 --> 00:08:55,240
IACC BUT CALLED AWAY TO A 

221
00:08:55,240 --> 00:08:57,160
MEETING AT THE WHITE HOUSE TODAY

222
00:08:57,160 --> 00:08:59,640
AND UNABLE TO JOIN US AND ASKED 

223
00:08:59,640 --> 00:09:02,760
DR. SCHWETZ TO JOIN US IN HIS 

224
00:09:02,760 --> 00:09:03,160
STEAD.

225
00:09:03,160 --> 00:09:03,560
DR. SCHWETZ.

226
00:09:03,560 --> 00:09:04,600
>> THANK YOU FOR THE 

227
00:09:04,600 --> 00:09:07,040
INTRODUCTION AND GOOD AFTERNOON 

228
00:09:07,040 --> 00:09:10,720
OR GOOD MORNING TO EVERYONE 

229
00:09:10,720 --> 00:09:11,560
DEPENDING ON WHERE YOU ARE.

230
00:09:11,560 --> 00:09:12,760
ACROSS THE COUNTRY AND ACROSS 

231
00:09:12,760 --> 00:09:15,960
THE WORLD.

232
00:09:15,960 --> 00:09:23,040
I WANT TO START BY THANKING YOU 

233
00:09:23,040 --> 00:09:26,000
FOR THE WORK OF THE WORK OF THE 

234
00:09:26,000 --> 00:09:26,640
INTERAGENCY AUTISM COORDINATING 

235
00:09:26,640 --> 00:09:28,560
COMMITTEE AND OF COURSE THEIR 

236
00:09:28,560 --> 00:09:31,360
SUPPORT FOR THE AUTISM COMMUNITY

237
00:09:31,360 --> 00:09:32,520
OVER THE YEARS.

238
00:09:32,520 --> 00:09:35,360
I ALSO WANT TO TAKE A MOMENT AND

239
00:09:35,360 --> 00:09:43,360
THANK DR. COURTNEY ACKLIN 

240
00:09:43,360 --> 00:09:45,120
SERVING AS THE REPRESENTATIVE 

241
00:09:45,120 --> 00:09:46,560
FOR NIH IN THE COMMITTEE IN LIEU

242
00:09:46,560 --> 00:09:47,560
OF DR. TABAK.

243
00:09:47,560 --> 00:09:51,080
AS JOSH MENTIONED, DR. LARRY 

244
00:09:51,080 --> 00:09:53,600
TABAK, THE ACTING NIH DIRECTOR 

245
00:09:53,600 --> 00:09:55,280
IS UNFORTUNATELY UNABLE TO BE 

246
00:09:55,280 --> 00:09:57,040
HERE TODAY BUT SENDS HIS REGARDS

247
00:09:57,040 --> 00:09:59,360
AND I WANT TO EMPHASIZE BOTH HE 

248
00:09:59,360 --> 00:10:03,520
AND I APPLAUD THE EFFORTS AND 

249
00:10:03,520 --> 00:10:04,560
COMMITMENT OF THIS COMMITTEE AND

250
00:10:04,560 --> 00:10:07,480
OF THE NEW AND RETURN MEMBERS OF

251
00:10:07,480 --> 00:10:09,080
THE IACC WHO I'M TOLD MAKE UP 

252
00:10:09,080 --> 00:10:11,160
THE LARGEST AND MOST DIVERSE 

253
00:10:11,160 --> 00:10:11,760
COMMITTEE TO DATE WHICH IS 

254
00:10:11,760 --> 00:10:15,760
GREAT.

255
00:10:15,760 --> 00:10:17,920
YOUR WORK, THE WORK THE 

256
00:10:17,920 --> 00:10:19,520
COMMITTEE DOES PROVIDES AN 

257
00:10:19,520 --> 00:10:20,440
IMPORTANT GUIDANCE TO THE 

258
00:10:20,440 --> 00:10:22,120
SECRETARY OF HEALTH AND HUMAN 

259
00:10:22,120 --> 00:10:24,520
SERVICES ON PRIORITIES AND GAPS 

260
00:10:24,520 --> 00:10:28,360
AND OPPORTUNITIES FOR AUTISM 

261
00:10:28,360 --> 00:10:29,920
RELATED RESEARCH SERVICES AND 

262
00:10:29,920 --> 00:10:30,720
SUPPORT.

263
00:10:30,720 --> 00:10:33,680
AND RECENTLY ON APRIL 2, WE 

264
00:10:33,680 --> 00:10:37,360
OBSERVED THE 15th ANNUAL WORLD 

265
00:10:37,360 --> 00:10:37,960
AUTISM AWARENESS DAY AND 

266
00:10:37,960 --> 00:10:39,120
CONTINUING THROUGHOUT THE MONTH 

267
00:10:39,120 --> 00:10:41,720
OF APRIL WHICH IS AS JOSH 

268
00:10:41,720 --> 00:10:45,120
MENTIONED IS NATIONAL AUTISM 

269
00:10:45,120 --> 00:10:46,960
AWARENESS MONTH WE CELEBRATE, 

270
00:10:46,960 --> 00:10:49,840
RECOGNIZE AND SUPPORT PEOPLE ON 

271
00:10:49,840 --> 00:10:53,360
THE AUTISM SPECTRUM WHICH IN OUR

272
00:10:53,360 --> 00:10:55,560
NATION INCLUDES ONE IN EVERY 44 

273
00:10:55,560 --> 00:10:58,160
CHILDREN AND ONE IN EVERY 45 

274
00:10:58,160 --> 00:10:58,360
ADULTS.

275
00:10:58,360 --> 00:11:00,360
AS PART OF THIS CELEBRATION, I 

276
00:11:00,360 --> 00:11:03,520
WANT TO EMPHASIZE NIH PROMOTES 

277
00:11:03,520 --> 00:11:05,000
ACCEPTANCE, UNDERSTANDING AND 

278
00:11:05,000 --> 00:11:06,400
INCLUSION TO CREATE A WORLD 

279
00:11:06,400 --> 00:11:08,760
WHERE ALL PEOPLE WITH AUTISM 

280
00:11:08,760 --> 00:11:10,360
HAVE THE SUPPORT THEY NEED TO 

281
00:11:10,360 --> 00:11:13,440
PURSUE THE LIVES THEY WANT TO 

282
00:11:13,440 --> 00:11:15,000
LEAD AND REACH THEIR FULL 

283
00:11:15,000 --> 00:11:15,520
POTENTIAL.

284
00:11:15,520 --> 00:11:19,800
AND NIH CELEBRATES THE STRENGTHS

285
00:11:19,800 --> 00:11:20,960
AND THE TALENT OF AUTISTIC 

286
00:11:20,960 --> 00:11:22,040
INDIVIDUALS AND THE UNIQUE 

287
00:11:22,040 --> 00:11:24,360
CONTRIBUTIONS THEY MAKE TO OUR 

288
00:11:24,360 --> 00:11:24,600
SOCIETY.

289
00:11:24,600 --> 00:11:28,040
BEING A RESEARCH ORGANIZATION OF

290
00:11:28,040 --> 00:11:29,480
COURSE NIH IS COMMITTED TO 

291
00:11:29,480 --> 00:11:30,360
FUNDING RESEARCH THAT SUPPORTS 

292
00:11:30,360 --> 00:11:33,600
THE HEALTH AND WELL BEING OF 

293
00:11:33,600 --> 00:11:34,720
PEOPLE ON THE AUTISM SPECTRUM 

294
00:11:34,720 --> 00:11:37,360
AND THEIR FAMILIES AND WE STRIVE

295
00:11:37,360 --> 00:11:39,040
TO ACHIEVE THIS BY SUPPORT 

296
00:11:39,040 --> 00:11:41,040
RESEARCH PORTFOLIO THAT INCLUDES

297
00:11:41,040 --> 00:11:43,200
A WIDE RANGE OF PROJECTS AND 

298
00:11:43,200 --> 00:11:45,120
ACTIVITIES THAT COVER THE LIFE 

299
00:11:45,120 --> 00:11:46,920
SPAN OF AUTISTIC INDIVIDUALS.

300
00:11:46,920 --> 00:11:49,560
AND I'M SURE MANY OF YOU ON THIS

301
00:11:49,560 --> 00:11:51,120
COMMITTEE IS WHY YOU'RE HERE BUT

302
00:11:51,120 --> 00:11:52,560
YOU'RE FAMILIAR WITH A LOT OF 

303
00:11:52,560 --> 00:11:54,280
OUR EFFORTS BUT JUST TO TAKE A 

304
00:11:54,280 --> 00:11:59,280
MOMENT TO CALL OUT A FEW 

305
00:11:59,280 --> 00:11:59,560
EXAMPLES.

306
00:11:59,560 --> 00:12:01,160
WE HAVE THE EARLY AUTISM 

307
00:12:01,160 --> 00:12:02,200
SCREENING INITIATIVE WHICH 

308
00:12:02,200 --> 00:12:04,160
FOCUSES ON DEVELOPING AND 

309
00:12:04,160 --> 00:12:05,200
VALIDATING SCREENING TOOLS TO 

310
00:12:05,200 --> 00:12:10,240
DETECT AUTISM IN THE FIRST YEAR 

311
00:12:10,240 --> 00:12:16,200
OF LIFE AND A FLAGSHIP AUTISM 

312
00:12:16,200 --> 00:12:18,320
CENTERS OF AUTISM PROGRAM THAT 

313
00:12:18,320 --> 00:12:18,960
PROVIDES RESEARCH INCLUDING 

314
00:12:18,960 --> 00:12:21,080
UNDERSTANDING THE BIOLOGY AND 

315
00:12:21,080 --> 00:12:24,280
GENETICS OF THE AUTISM SPECTRUM.

316
00:12:24,280 --> 00:12:24,800
IMPROVING DEVELOPMENTAL 

317
00:12:24,800 --> 00:12:27,520
OUTCOMES, INCREASING ACCESS TO 

318
00:12:27,520 --> 00:12:32,600
SERVICES AND DEVELOPING NOVEL 

319
00:12:32,600 --> 00:12:37,880
INTERVENTIONS AND INNOVATIVE 

320
00:12:37,880 --> 00:12:39,160
DELIVERY METHODS AND NIH 

321
00:12:39,160 --> 00:12:42,600
SUPPORTS ADULTS WITH AUTISM WITH

322
00:12:42,600 --> 00:12:44,200
A FOCUS ON IMPROVING EMPLOYMENT 

323
00:12:44,200 --> 00:12:45,520
OPPORTUNITIES AND STRATEGIES TO 

324
00:12:45,520 --> 00:12:49,760
MANAGE CO-OCCURRING HEALTH 

325
00:12:49,760 --> 00:12:50,040
CONDITIONS.

326
00:12:50,040 --> 00:12:52,000
AND VERY IMPORTANTLY WE'RE 

327
00:12:52,000 --> 00:12:55,560
DEDICATED TO DIVERSIFYING THE 

328
00:12:55,560 --> 00:12:57,120
AUTISM WORKFORCE THROUGH CAREER 

329
00:12:57,120 --> 00:12:58,360
DEVELOPMENT AND ENHANCEMENT 

330
00:12:58,360 --> 00:12:58,560
AWARDS.

331
00:12:58,560 --> 00:13:00,560
I'D LIKE TO EXTEND MY GRATITUDE 

332
00:13:00,560 --> 00:13:03,120
TO EACH OF YOU WHO SERVE ON THE 

333
00:13:03,120 --> 00:13:08,280
IACC FOR YOUR DEDICATION TO 

334
00:13:08,280 --> 00:13:09,600
ADDRESSING A LONG LIST OF 

335
00:13:09,600 --> 00:13:11,920
CHALLENGES INCLUDING MENTAL AND 

336
00:13:11,920 --> 00:13:14,360
PHYSICAL HEALTH, EDUCATION, 

337
00:13:14,360 --> 00:13:16,400
EMPLOYMENT, HOUSING, RACIAL AND 

338
00:13:16,400 --> 00:13:18,160
ETHNIC DISPARITIES AND SERVICES 

339
00:13:18,160 --> 00:13:19,840
AND SUPPORTS TO IMPROVE QUALITY 

340
00:13:19,840 --> 00:13:23,520
OF LIFE.

341
00:13:23,520 --> 00:13:25,520
NIH LOOKS FORWARD TO THE NEW 

342
00:13:25,520 --> 00:13:28,800
ADDITION OF THE IACC STRATEGIC 

343
00:13:28,800 --> 00:13:29,360
PLAN FOR AUTISM SPECTRUM 

344
00:13:29,360 --> 00:13:31,200
DISORDER WHICH WILL HIGHLIGHT A 

345
00:13:31,200 --> 00:13:33,360
WIDE RANGE OF VITAL ISSUES AND 

346
00:13:33,360 --> 00:13:35,520
TOGETHER WE'LL WORK TO ENSURE 

347
00:13:35,520 --> 00:13:37,960
PEOPLE ON THE AUTISM SPECTRUM 

348
00:13:37,960 --> 00:13:39,560
BENEFIT FROM ADVANCES IN 

349
00:13:39,560 --> 00:13:41,960
BIOMEDICAL RESEARCH AND RECEIVE 

350
00:13:41,960 --> 00:13:42,960
THE BEST EVIDENCE-BASED SERVICES

351
00:13:42,960 --> 00:13:43,760
AND SUPPORT.

352
00:13:43,760 --> 00:13:45,480
AND ALSO THEY HAVE ENHANCED 

353
00:13:45,480 --> 00:13:47,560
OPPORTUNITIES TO PARTICIPATE IN 

354
00:13:47,560 --> 00:13:48,520
THEIR COMMUNITIES.

355
00:13:48,520 --> 00:13:51,480
SO WITH THAT, I'LL THANK YOU AND

356
00:13:51,480 --> 00:13:53,920
I THINK WE'RE GOING TO TAKE A 

357
00:13:53,920 --> 00:13:54,800
MOMENT, IF I UNDERSTAND TO DO 

358
00:13:54,800 --> 00:13:59,560
SOME Q&A.

359
00:13:59,560 --> 00:14:00,960
HAPPY TO ANSWER ANY QUESTIONS.

360
00:14:00,960 --> 00:14:02,520
>> THANK YOU VERY MUCH, 

361
00:14:02,520 --> 00:14:02,960
DR. SCHWETZ.

362
00:14:02,960 --> 00:14:06,400
HAPPY TO TAKE ANY QUESTIONS FROM

363
00:14:06,400 --> 00:14:08,400
ANY MEMBERS OF THE COMMITTEE WHO

364
00:14:08,400 --> 00:14:11,040
WOULD LIKE TO ASK DR. SCHWETZ 

365
00:14:11,040 --> 00:14:12,760
ABOUT NIH'S ROLE IN AUTISM 

366
00:14:12,760 --> 00:14:15,320
RESEARCH OR OTHER MATTERS OF 

367
00:14:15,320 --> 00:14:23,320
RELEVANCE.

368
00:14:23,320 --> 00:14:25,720
PLEASE JUST RAISE OUR HAND OR 

369
00:14:25,720 --> 00:14:25,960
UNMUTE.

370
00:14:25,960 --> 00:14:28,440
>> WHILE PEOPLE ARE FORMULATING 

371
00:14:28,440 --> 00:14:33,080
QUESTIONS I'D TAKE A MOMENT TO 

372
00:14:33,080 --> 00:14:36,760
CONGRATULATE HARI TO VANDERBILT.

373
00:14:36,760 --> 00:14:39,160
I DID MY POST-DOC THERE AND IT'S

374
00:14:39,160 --> 00:14:49,840
A GREAT PLACE.

375
00:14:49,840 --> 00:14:52,040
>> DR. AVILA, PLEASE.

376
00:14:52,040 --> 00:14:53,160
>> A QUICK QUESTION.

377
00:14:53,160 --> 00:14:55,560
WE RECENTLY RECEIVED AN NIH 

378
00:14:55,560 --> 00:14:58,000
GRANT THAT WE'RE WORKING WITH 

379
00:14:58,000 --> 00:14:59,160
VALID POPULATIONS AND WE KNOW 

380
00:14:59,160 --> 00:15:04,360
NIH IS LOOKING AT HAVING SOME 

381
00:15:04,360 --> 00:15:05,560
COMMON ELEMENTS IN IDENTIFIABLE 

382
00:15:05,560 --> 00:15:07,480
INFORMATION OF PARTICIPANTS WERE

383
00:15:07,480 --> 00:15:08,920
PART OF RESEARCH AT NIH GRANTS 

384
00:15:08,920 --> 00:15:12,160
AND THAT HAS BEEN A BIG 

385
00:15:12,160 --> 00:15:15,960
DISCUSSION WE JUST HAD THIS 

386
00:15:15,960 --> 00:15:18,680
MORNING AROUND MANY ASPECTS OF 

387
00:15:18,680 --> 00:15:20,160
IDENTIFIABLE INFORMATION IS A 

388
00:15:20,160 --> 00:15:21,760
DETERRENT FOR WORKING WITH 

389
00:15:21,760 --> 00:15:22,480
VULNERABLE POPULATIONS.

390
00:15:22,480 --> 00:15:26,560
IT'S TAKEN US DECADES TO BUILD 

391
00:15:26,560 --> 00:15:27,760
TRUST WITH COMMUNITIES THAT 

392
00:15:27,760 --> 00:15:31,000
DON'T TRUST RESEARCHERS OR 

393
00:15:31,000 --> 00:15:32,760
ACADEMIA OR SCHOOLS OF MEDICINE 

394
00:15:32,760 --> 00:15:38,840
AND NOW LOOKING AT THE CHANGE IN

395
00:15:38,840 --> 00:15:42,120
REQUESTING THAT LONG LIST OF 

396
00:15:42,120 --> 00:15:51,160
COMMON ELEMENTS THE PARTICIPANTS

397
00:15:51,160 --> 00:15:54,280
WILL LOOK AT ANYTHING FROM THE 

398
00:15:54,280 --> 00:15:55,560
ADVOCACY PERSPECTIVE AND EDUCATE

399
00:15:55,560 --> 00:15:58,360
AGENCIES AROUND UNDERSTANDING 

400
00:15:58,360 --> 00:15:59,760
THE IMPORTANCE OF BUILDING TRUST

401
00:15:59,760 --> 00:16:01,480
WORKING WITH VULNERABLE 

402
00:16:01,480 --> 00:16:02,480
POPULATION.

403
00:16:02,480 --> 00:16:04,120
>> THAT'S A GREAT QUESTION.

404
00:16:04,120 --> 00:16:07,560
THAT'S ALWAYS SOMETHING WE WANT 

405
00:16:07,560 --> 00:16:11,080
TO ENSURE THAT IN ORDER TO FULLY

406
00:16:11,080 --> 00:16:13,200
ENGAGE COMMUNITIES IN RESEARCH 

407
00:16:13,200 --> 00:16:14,800
WE HAVE TO HAVE THAT TRUST BUILT

408
00:16:14,800 --> 00:16:18,840
UP AND THE TRUST RELATIONSHIP 

409
00:16:18,840 --> 00:16:21,200
AND I THINK SOMETIMES USE THE 

410
00:16:21,200 --> 00:16:22,960
PHRASE OR SAYING THAT THESE 

411
00:16:22,960 --> 00:16:24,760
THINGS MOVE AT THE SPEED OF 

412
00:16:24,760 --> 00:16:27,560
TRUST.

413
00:16:27,560 --> 00:16:30,200
SO YOU CAN'T ALSO JUST -- IT'S 

414
00:16:30,200 --> 00:16:31,440
NOT SOMETHING YOU CAN THROW 

415
00:16:31,440 --> 00:16:33,160
ADDITIONAL RESOURCES OUT AND 

416
00:16:33,160 --> 00:16:36,960
EXPECT THINGS TO SPEED UP.

417
00:16:36,960 --> 00:16:42,120
IT TAKES TIME TO RELATIONSHIPS.

418
00:16:42,120 --> 00:16:45,080
I KNOW THESE THINGS ARE OFTEN 

419
00:16:45,080 --> 00:16:46,000
PROGRAM DEPENDENT AND SOMETHING 

420
00:16:46,000 --> 00:16:51,200
WE TALK ABOUT IN OUR RAPID ACCEL

421
00:16:51,200 --> 00:16:53,680
ACCELERATION OF DIAGNOSTICS 

422
00:16:53,680 --> 00:16:53,920
PROGRAM.

423
00:16:53,920 --> 00:16:55,880
ACROSS THE BOARD THIS IS 

424
00:16:55,880 --> 00:16:58,240
SOMETHING THAT IS BEING 

425
00:16:58,240 --> 00:16:59,200
CONSIDERED FOR A LOT OF PROGRAMS

426
00:16:59,200 --> 00:17:02,800
AND I ENCOURAGE YOU IF THERE'S 

427
00:17:02,800 --> 00:17:04,200
SPECIFIC QUESTION YOUR CURRENT 

428
00:17:04,200 --> 00:17:05,560
PROJECT TO REACH OUT TO YOUR 

429
00:17:05,560 --> 00:17:06,680
PROGRAM STAFF AND WORK THROUGH 

430
00:17:06,680 --> 00:17:08,360
SOME OF THE ISSUES YOU MAY HAVE 

431
00:17:08,360 --> 00:17:09,200
OR QUESTIONS YOU MAY HAVE.

432
00:17:09,200 --> 00:17:12,960
>> THANK YOU.

433
00:17:12,960 --> 00:17:13,400
>> THANK YOU.

434
00:17:13,400 --> 00:17:15,560
TWO MORE QUESTIONS.

435
00:17:15,560 --> 00:17:18,040
I JUST WANT TO REMIND THOSE WHO 

436
00:17:18,040 --> 00:17:19,440
NEED COMMUNICATIVE ASSISTANCE WE

437
00:17:19,440 --> 00:17:21,640
NOW HAVE A PLACE TO SEND 

438
00:17:21,640 --> 00:17:25,360
COMMENTS IN THE CHAT IT'S 

439
00:17:25,360 --> 00:17:27,160
LABELLED "SEND COMMENTS HERE." 

440
00:17:27,160 --> 00:17:30,400
LET ME FIRST TURN TO AMANDA FROM

441
00:17:30,400 --> 00:17:31,360
THE ASSOCIATION OF 

442
00:17:31,360 --> 00:17:32,440
ADMINISTRATION FOR COMMUNITY 

443
00:17:32,440 --> 00:17:32,680
LIVING.

444
00:17:32,680 --> 00:17:33,240
>> SO MANY ACRONYMS.

445
00:17:33,240 --> 00:17:38,960
I KNOW.

446
00:17:38,960 --> 00:17:45,200
IN ADDITION ACL I'M THE CO-CHAIR

447
00:17:45,200 --> 00:17:47,440
FOR THE -- INTERAGENCY COUNCIL 

448
00:17:47,440 --> 00:17:51,040
ON DISABILITY RESEARCH.

449
00:17:51,040 --> 00:17:54,240
AND NOT THAT COUNCIL BUT THE 

450
00:17:54,240 --> 00:17:56,240
SUBCOMMITTEE AND THAT'S FOCUSSED

451
00:17:56,240 --> 00:17:58,160
ON DISABILITY STATISTICS.

452
00:17:58,160 --> 00:18:00,960
WHAT WE'RE TRYING TO FIGURE OUT 

453
00:18:00,960 --> 00:18:05,320
ALL THE WAY WHAT'S THE PRIORITY 

454
00:18:05,320 --> 00:18:07,560
IN TERMS OF DATA AND STATISTICS 

455
00:18:07,560 --> 00:18:08,680
AROUND RESEARCH AND A WONDER IF 

456
00:18:08,680 --> 00:18:12,960
YOU HAVE ANY COMMENTS ABOUT WHAT

457
00:18:12,960 --> 00:18:16,320
WAYS WE CAN BEST SUPPORT DATA 

458
00:18:16,320 --> 00:18:19,960
EFFORTS OR STATISTICS IN EITHER 

459
00:18:19,960 --> 00:18:23,080
CASE TO IMPROVE ACCESS FOR THE 

460
00:18:23,080 --> 00:18:23,800
RESEARCHERS THAT YOU SUPPORT IN 

461
00:18:23,800 --> 00:18:27,880
AUTISM RESEARCH.

462
00:18:27,880 --> 00:18:30,200
>> YEAH, I THINK OBVIOUSLY SOME 

463
00:18:30,200 --> 00:18:31,760
OF THE SIMILAR QUESTIONS APPLY 

464
00:18:31,760 --> 00:18:35,240
ACROSS THE BOARD AND MORE 

465
00:18:35,240 --> 00:18:36,800
BROADLY ACROSS ALL OF BIOMEDICAL

466
00:18:36,800 --> 00:18:37,640
RESEARCH.

467
00:18:37,640 --> 00:18:41,080
THIS IS A REALLY IMPORTANT 

468
00:18:41,080 --> 00:18:41,360
QUESTION.

469
00:18:41,360 --> 00:18:43,120
I DON'T KNOW IF THERE'S A 

470
00:18:43,120 --> 00:18:45,240
STANDARD ONE I'LL ANSWER TO BUT 

471
00:18:45,240 --> 00:18:48,040
I WILL SAY WE'RE LAUNCHING NEXT 

472
00:18:48,040 --> 00:18:50,720
YEAR IN JANUARY SOME EFFORTS 

473
00:18:50,720 --> 00:18:52,520
AROUND DATA SHARING AND REVISING

474
00:18:52,520 --> 00:18:56,640
OUR POLICY OR IMPLEMENTING OUR 

475
00:18:56,640 --> 00:18:58,160
REVISED POLICY THERE.

476
00:18:58,160 --> 00:19:00,040
SO I THINK WE NEED MORE 

477
00:19:00,040 --> 00:19:00,720
CONVERSATIONS PROBABLY OFFLINE 

478
00:19:00,720 --> 00:19:03,200
TO WORK THROUGH ALL THE DETAILS 

479
00:19:03,200 --> 00:19:07,560
AND THERE'S PROBABLY, I'M SURE, 

480
00:19:07,560 --> 00:19:08,960
UNIQUE CHALLENGES FOR EACH AREA 

481
00:19:08,960 --> 00:19:09,680
OF SCIENCE AND THIS ONE IS NO 

482
00:19:09,680 --> 00:19:18,960
EXCEPTION.

483
00:19:18,960 --> 00:19:21,160
>> DR. ROBINSON FROM THE 

484
00:19:21,160 --> 00:19:23,160
DEPARTMENT OF LABOR.

485
00:19:23,160 --> 00:19:23,560
SCOTT.

486
00:19:23,560 --> 00:19:28,560
>> THANK YOU, DR. GORDON.

487
00:19:28,560 --> 00:19:31,040
MY QUESTION IS MORE ABOUT AT THE

488
00:19:31,040 --> 00:19:37,040
TOP LEVEL LEADERSHIP, ARE YOU 

489
00:19:37,040 --> 00:19:40,800
EXPLORING CREATIVE WAYS FOR 

490
00:19:40,800 --> 00:19:44,760
NEWER WAYS DOWN THE PIKE TO 

491
00:19:44,760 --> 00:19:46,920
EMPOWER FOCUS ON AUTISTIC ADULTS

492
00:19:46,920 --> 00:19:49,240
SINCE WE TALK A LOT AT THE IACC 

493
00:19:49,240 --> 00:19:51,200
MEETINGS AND OTHER SETTINGS HOW 

494
00:19:51,200 --> 00:19:52,880
THERE'S AN UNREPRESENTATION OF 

495
00:19:52,880 --> 00:19:54,720
THE LIFE COURSE FOCUS.

496
00:19:54,720 --> 00:19:57,160
I DON'T KNOW IF THERE'S NEWER 

497
00:19:57,160 --> 00:19:59,560
THINGS COMING DOWN THE PIPELINE 

498
00:19:59,560 --> 00:20:00,360
AS FAR AS NIH YOU MAY BE 

499
00:20:00,360 --> 00:20:02,360
CONSIDERING OR NEW PURSUITS OR 

500
00:20:02,360 --> 00:20:03,160
ACTIVITIES OR MAYBE THAT'S 

501
00:20:03,160 --> 00:20:06,920
SOMETHING THAT COULD BE COMING 

502
00:20:06,920 --> 00:20:08,920
LATER AS FAR AS I'VE SEEN 

503
00:20:08,920 --> 00:20:11,680
INNOVATIVE THINGS INCLUDING THE 

504
00:20:11,680 --> 00:20:13,240
CROSS-CONNECT TO EMPLOYMENT AND 

505
00:20:13,240 --> 00:20:14,880
HEALTH AND NIH RESEARCH.

506
00:20:14,880 --> 00:20:15,960
CURIOUS ABOUT YOUR THOUGHTS TO 

507
00:20:15,960 --> 00:20:20,760
EXPAND THAT LIFE COURSE RELATED 

508
00:20:20,760 --> 00:20:22,680
TO FOCUS LIFE IN THE NIH 

509
00:20:22,680 --> 00:20:25,360
RESEARCH PORTFOLIO AND 

510
00:20:25,360 --> 00:20:26,200
ENHANCEMENT THEREIN.

511
00:20:26,200 --> 00:20:28,360
>> WE'RE ALWAYS LOOKING TO 

512
00:20:28,360 --> 00:20:29,240
EXPLORE OPPORTUNITIES AROUND HOW

513
00:20:29,240 --> 00:20:38,560
TO MAKE SURE THAT WE'RE ENGAGING

514
00:20:38,560 --> 00:20:41,160
THE RESEARCH WORKFORCE AND THE 

515
00:20:41,160 --> 00:20:42,600
ACTIVITIES THAT CUT ACROSS THE 

516
00:20:42,600 --> 00:20:44,720
LIFE SPAN AND JOSH IS PROBABLY 

517
00:20:44,720 --> 00:20:46,760
THE MORE EXPERT IN THAT SPACE 

518
00:20:46,760 --> 00:20:49,640
THAN I AM TO TALK ABOUT THINGS 

519
00:20:49,640 --> 00:20:51,200
HE MAY BE CONSIDERING SPECIFIC 

520
00:20:51,200 --> 00:20:55,560
TO AUTISM BUT THE LIFE COURSE I 

521
00:20:55,560 --> 00:20:57,360
KNOW HAS BEEN A PRIORITY IN 

522
00:20:57,360 --> 00:20:58,400
PREVIOUS STRATEGIC PLANS THAT 

523
00:20:58,400 --> 00:20:59,960
HAVE COME OUT AND I THINK WILL 

524
00:20:59,960 --> 00:21:00,760
CONTINUE TO BE.

525
00:21:00,760 --> 00:21:02,760
I DON'T KNOW IF JOSH OR SUSAN 

526
00:21:02,760 --> 00:21:05,920
WANT TO ELABORATE FURTHER.

527
00:21:05,920 --> 00:21:07,920
>> YEAH, THANKS, TARA.

528
00:21:07,920 --> 00:21:11,240
AND SCOTT, THANKS FOR THE 

529
00:21:11,240 --> 00:21:11,520
QUESTION.

530
00:21:11,520 --> 00:21:13,800
I KNOW IT'S AN ISSUE THIS 

531
00:21:13,800 --> 00:21:15,240
COMMITTEE IN PREVIOUS ITERATIONS

532
00:21:15,240 --> 00:21:17,120
OFTEN DEALT WITH AND YOU KNOW 

533
00:21:17,120 --> 00:21:18,600
WHAT I'LL SAY ALREADY WHICH IS 

534
00:21:18,600 --> 00:21:19,360
WE'RE TRYING TO BUILD A 

535
00:21:19,360 --> 00:21:23,760
WORKFORCE IN THIS AREA AND WE'VE

536
00:21:23,760 --> 00:21:25,640
BEEN SOMEWHAT SUCCESSFUL OF LATE

537
00:21:25,640 --> 00:21:29,560
TRYING TO GET PEOPLE TO PAY 

538
00:21:29,560 --> 00:21:31,480
ATTENTION TO THE LIFE COURSE 

539
00:21:31,480 --> 00:21:32,640
ISSUES AND WORK HARD ON 

540
00:21:32,640 --> 00:21:33,160
EXPANDING OPPORTUNITIES.

541
00:21:33,160 --> 00:21:35,440
I THINK WE HAVE TIME FOR ONE 

542
00:21:35,440 --> 00:21:39,200
MORE QUESTION AND A SEE DENA 

543
00:21:39,200 --> 00:21:40,960
GASNER'S HAND UP.

544
00:21:40,960 --> 00:21:42,720
TAKE IT AWAY.

545
00:21:42,720 --> 00:21:45,200
>> I WANT TO PIGGY BACK ON WHAT 

546
00:21:45,200 --> 00:21:46,160
SCOTT SAID.

547
00:21:46,160 --> 00:21:47,320
ONE THING I SAW MISSING ACROSS 

548
00:21:47,320 --> 00:21:49,600
THE BOARD IN OUR STRATEGIC PLAN 

549
00:21:49,600 --> 00:21:51,200
AND RESEARCH PORTFOLIO ABOUT 

550
00:21:51,200 --> 00:21:54,760
ADULTS IS A DISPARITY BETWEEN 

551
00:21:54,760 --> 00:21:56,400
EARLY INTERVENTION-BASED 

552
00:21:56,400 --> 00:21:58,240
DIAGNOSES WHERE WE PUT AN 

553
00:21:58,240 --> 00:22:02,120
EMPHASIS ON INTENSIVE SUPPORTS 

554
00:22:02,120 --> 00:22:03,200
AT THE TIME OF DIAGNOSIS BUT 

555
00:22:03,200 --> 00:22:04,520
PEOPLE HAVE BEEN MISSED BECAUSE 

556
00:22:04,520 --> 00:22:07,480
OF A PRIOR ITERATIONS OF THE DSM

557
00:22:07,480 --> 00:22:09,200
NOT INCLUDING THEM ARE NOW WELL 

558
00:22:09,200 --> 00:22:11,480
INTO ADULTHOOD IN THEIR 40s, 50s

559
00:22:11,480 --> 00:22:13,880
AND 60s AND GET A PIECE OF PAPER

560
00:22:13,880 --> 00:22:16,200
AND CONFIRMATION AND SENT ON 

561
00:22:16,200 --> 00:22:17,200
THEIR MERRY WAY.

562
00:22:17,200 --> 00:22:22,040
IN TERM OF OUR PORTFOLIO, I 

563
00:22:22,040 --> 00:22:25,720
THINK LOOKING AT THE VALUE OF 

564
00:22:25,720 --> 00:22:26,800
INTENSIVE INTERVENTION AT THE 

565
00:22:26,800 --> 00:22:31,080
AGE OF DIAGNOSIS MAY STRENGTHEN 

566
00:22:31,080 --> 00:22:32,400
OUR RESEARCH PORTFOLIO.

567
00:22:32,400 --> 00:22:35,320
I NOTICE ALICIA HALLADAY WAS 

568
00:22:35,320 --> 00:22:37,840
REFERRING TO SYSTEMS NAVIGATORS.

569
00:22:37,840 --> 00:22:42,800
ADULTS DON'T COME TO A DIAGNOSIS

570
00:22:42,800 --> 00:22:44,840
IN THE BEST PLACE AND SO HAVING 

571
00:22:44,840 --> 00:22:46,920
INTENSIVE SUPPORT TO PLUG THEM 

572
00:22:46,920 --> 00:22:48,920
INTO SERVICES LIKE WE DO PEOPLE 

573
00:22:48,920 --> 00:22:50,760
WHOSE KIDS GET DIAGNOSED AT 2 

574
00:22:50,760 --> 00:22:53,440
AND GET EARLY INTERVENTION, 

575
00:22:53,440 --> 00:22:55,640
COMPARABLY, MAY BE A REAL 

576
00:22:55,640 --> 00:23:02,840
STRENGTH TO THE PORTFOLIO.

577
00:23:02,840 --> 00:23:04,960
>> WE OFTEN FOCUS ON ADULTS AND 

578
00:23:04,960 --> 00:23:06,760
CHILDREN AND MY UNDERSTANDING IS

579
00:23:06,760 --> 00:23:14,400
THERE'S A CONTINUED FOCUS ON 

580
00:23:14,400 --> 00:23:16,360
THAT TRANSITION SPACE BUT FOLKS 

581
00:23:16,360 --> 00:23:17,760
MAY BE CAUGHT IN THE MIDDLE OF 

582
00:23:17,760 --> 00:23:20,280
THE TRANSITION YOU WERE 

583
00:23:20,280 --> 00:23:24,800
MENTIONING OF THE DIFFERENTING 

584
00:23:24,800 --> 00:23:26,080
DIAGNOSTIC CRITERIA AND AS AN 

585
00:23:26,080 --> 00:23:27,320
ADULT YOU HAVE DIFFERENT NEEDS 

586
00:23:27,320 --> 00:23:35,480
THAN A YOUNG CHILD.

587
00:23:35,480 --> 00:23:47,560
>> I WANT TO THANK DR. SCHWETZ 

588
00:23:47,560 --> 00:23:50,360
AND REPRESENTING DR. TABAK AND 

589
00:23:50,360 --> 00:23:57,200
WE HAVE COURTNEY WHO KEEPS HIM 

590
00:23:57,200 --> 00:23:57,480
APPRISED.

591
00:23:57,480 --> 00:23:58,960
IVANOVA DID YOU WANT TO ASK A 

592
00:23:58,960 --> 00:23:59,200
QUESTION?

593
00:23:59,200 --> 00:24:09,040
HI, COURTNEY.

594
00:24:09,040 --> 00:24:11,320
>> I DO.

595
00:24:11,320 --> 00:24:14,960
I WANT TO ASK IS THE NIH 

596
00:24:14,960 --> 00:24:16,560
CONSIDERING MAKING SURE THE 

597
00:24:16,560 --> 00:24:17,920
POLICY AND RECOMMENDATIONS 

598
00:24:17,920 --> 00:24:19,400
THEY'RE PUTTING OUT ABOUT THE 

599
00:24:19,400 --> 00:24:23,560
PANDEMIC ALSO DOES IT ALLOW FOR 

600
00:24:23,560 --> 00:24:25,560
DISCRIMINATION AGAINST AUTISTIC 

601
00:24:25,560 --> 00:24:25,760
PEOPLE?

602
00:24:25,760 --> 00:24:28,720
BECAUSE FOR THE LAST TWO YEARS 

603
00:24:28,720 --> 00:24:32,760
THE MANDATES HAVE CAUSED A LOT 

604
00:24:32,760 --> 00:24:33,760
OF DISCRIMINATION FOR AUTISTIC 

605
00:24:33,760 --> 00:24:35,280
PEOPLE AND I WANT TO MAKE SURE 

606
00:24:35,280 --> 00:24:39,240
THEY DON'T DO THAT IN THE FUTURE

607
00:24:39,240 --> 00:24:44,760
AND THAT WE CAN WORK ON AND 

608
00:24:44,760 --> 00:24:48,120
ACCOMMODATE AUTISTIC 

609
00:24:48,120 --> 00:24:48,400
INDIVIDUALS.

610
00:24:48,400 --> 00:24:54,360
I THINK AUTISTICS HAVE BEEN 

611
00:24:54,360 --> 00:24:56,480
ISOLATED BECAUSE THEY CAN'T GET 

612
00:24:56,480 --> 00:24:57,920
MEDICAL PROCEDURES AND WANT TO 

613
00:24:57,920 --> 00:24:59,560
MAKE SURE WE'RE NOT LEAVING 

614
00:24:59,560 --> 00:25:01,640
THOSE FOLKS BEHIND AND ALLOWING 

615
00:25:01,640 --> 00:25:07,560
FOR THAT DISCRIMINATION TO 

616
00:25:07,560 --> 00:25:10,600
CONTINUE.

617
00:25:10,600 --> 00:25:12,240
I WANT TO SEE IF NIH CONSIDERED 

618
00:25:12,240 --> 00:25:12,640
THAT.

619
00:25:12,640 --> 00:25:15,560
>> WE'RE SUPPORTING RESEARCH ON 

620
00:25:15,560 --> 00:25:17,760
CERTAIN ASPECTS AND THE IMPACT 

621
00:25:17,760 --> 00:25:18,360
OF THE PANDEMIC.

622
00:25:18,360 --> 00:25:27,120
I'M SURE THERE'S MORE WE CAN DO 

623
00:25:27,120 --> 00:25:29,000
THIS IS A GREAT AND IMPORTANT 

624
00:25:29,000 --> 00:25:30,960
TOPIC WE CAN LEAVE THIS ON BUT 

625
00:25:30,960 --> 00:25:32,640
NEEDS MORE EXPLORATION AND 

626
00:25:32,640 --> 00:25:34,120
DISCUSSION AROUND WHAT MORE WE 

627
00:25:34,120 --> 00:25:35,560
CAN DO TO FURTHER ENHANCE 

628
00:25:35,560 --> 00:25:40,840
WHATEVER POLICIES WE'RE PUTTING 

629
00:25:40,840 --> 00:25:42,320
OUT IN PARTICULAR AT THE NIH AND

630
00:25:42,320 --> 00:25:48,040
HOW WE CAN UTILIZE OUR ROLE A 

631
00:25:48,040 --> 00:25:51,840
RESEARCH AGENCY TO BETTER 

632
00:25:51,840 --> 00:25:53,360
ENHANCE THE KNOWLEDGE AND 

633
00:25:53,360 --> 00:25:54,520
LEARNING WHAT HAS WORKED AND 

634
00:25:54,520 --> 00:25:55,360
ABOUT WHAT HASN'T WORKED.

635
00:25:55,360 --> 00:25:58,200
WE'RE STILL IN THIS VERY DYNAMIC

636
00:25:58,200 --> 00:25:59,560
PHASE IN THE PANDEMIC.

637
00:25:59,560 --> 00:26:02,640
WE'RE STILL WITHIN IT AND HAVE 

638
00:26:02,640 --> 00:26:03,200
OPPORTUNITIES TO BE ABLE TO 

639
00:26:03,200 --> 00:26:07,560
EXPLORE THAT FURTHER.

640
00:26:07,560 --> 00:26:08,320
THANK YOU FOR THAT QUESTION.

641
00:26:08,320 --> 00:26:10,320
>> THANK YOU.

642
00:26:10,320 --> 00:26:11,560
IVANOVA.

643
00:26:11,560 --> 00:26:15,880
THANK YOU, DR. SCHWETZ AND I 

644
00:26:15,880 --> 00:26:17,160
APPRECIATE YOU COMING AND 

645
00:26:17,160 --> 00:26:18,480
JOINING US TODAY.

646
00:26:18,480 --> 00:26:19,560
>> THANKS SO MUCH.

647
00:26:19,560 --> 00:26:26,440
GOOD TO SEE YOU ALL.

648
00:26:26,440 --> 00:26:28,360
MOVING ALONG, WE'RE AHEAD OF 

649
00:26:28,360 --> 00:26:29,960
SCHEDULE BUT DO WE HAVE ALL OF 

650
00:26:29,960 --> 00:26:36,600
OUR GUESTS READY FOR THE NEXT 

651
00:26:36,600 --> 00:26:36,920
SECTION.

652
00:26:36,920 --> 00:26:37,440
SUSAN, DO YOU KNOW?

653
00:26:37,440 --> 00:26:42,960
>> WE CAN GET STARTED WITH 

654
00:26:42,960 --> 00:26:45,240
TERESA AND HAVE LORI GERHARD.

655
00:26:45,240 --> 00:26:47,560
I WANT TO AGAIN THANKS 

656
00:26:47,560 --> 00:26:48,400
DR. SCHWETZ FOR JOINING THE 

657
00:26:48,400 --> 00:26:49,760
MEETING AND FIELDING QUESTIONS 

658
00:26:49,760 --> 00:26:53,520
FOR WHICH AS USUAL HAS GIVEN US 

659
00:26:53,520 --> 00:26:56,520
FOOD FOR THOUGHT FOR FUTURE 

660
00:26:56,520 --> 00:26:58,360
DISCUSSION IN THE IACC.

661
00:26:58,360 --> 00:27:00,320
WITH REGARD TO THE LAST QUESTION

662
00:27:00,320 --> 00:27:03,200
DR. SCHWETZ MENTIONED 

663
00:27:03,200 --> 00:27:04,560
PERIPHERALLY, NIH DOESN'T SET 

664
00:27:04,560 --> 00:27:06,040
POLICIES IT'S CDC AND FDA AND 

665
00:27:06,040 --> 00:27:07,000
OTHER ORGANIZATIONS IN THE 

666
00:27:07,000 --> 00:27:08,640
GOVERNMENT BUT WE DO PROVIDE THE

667
00:27:08,640 --> 00:27:10,640
RESEARCH BACKBONE TO DEMONSTRATE

668
00:27:10,640 --> 00:27:15,080
THE NEED FOR THOSE POLICIES.

669
00:27:15,080 --> 00:27:19,560
AND SO IT'S CERTAINLY SOMETHING 

670
00:27:19,560 --> 00:27:21,200
THIS GROUP COULD DO TO RECOMMEND

671
00:27:21,200 --> 00:27:25,120
ALTERATIONS TO THOSE POLICIES 

672
00:27:25,120 --> 00:27:26,240
THAT WOULD BETTER TAKE INTO 

673
00:27:26,240 --> 00:27:29,640
ACCOUNT THE NEEDS OF INDIVIDUALS

674
00:27:29,640 --> 00:27:32,360
WITH NEEDS AND THEIR FAMILIES.

675
00:27:32,360 --> 00:27:35,920
THAT MAY BE SOMETHING WE THINK 

676
00:27:35,920 --> 00:27:37,240
ABOUT IN PLANNING FOR FUTURE 

677
00:27:37,240 --> 00:27:37,720
PANDEMICS.

678
00:27:37,720 --> 00:27:38,880
TO INTRODUCE THE NEXT 

679
00:27:38,880 --> 00:27:40,680
PRESENTATIONS WE'LL SWITCH FROM 

680
00:27:40,680 --> 00:27:45,040
THE NIH IN RESEARCH TO UPDATES 

681
00:27:45,040 --> 00:27:46,480
ON DISABILITY HOUSING PROGRAMS.

682
00:27:46,480 --> 00:27:51,040
PLEASED WE HAVE TWO SPEAKERS 

683
00:27:51,040 --> 00:27:52,920
JOINING US TODAY FROM THE 

684
00:27:52,920 --> 00:27:53,880
FEDERAL GOVERNMENT SIDE.

685
00:27:53,880 --> 00:27:58,040
WE HAVE DR. TERESA SOUZA A 

686
00:27:58,040 --> 00:28:00,040
SOCIAL SCIENCE ANALYST AT THE 

687
00:28:00,040 --> 00:28:02,160
U.S. DEPARTMENT OF HOUSING AND 

688
00:28:02,160 --> 00:28:03,560
URBAN DEVELOPMENT AND I'D JUST 

689
00:28:03,560 --> 00:28:05,360
ADD NIH JUST HAD A GREAT 

690
00:28:05,360 --> 00:28:07,560
CONVERSATION WITH HUD ABOUT A 

691
00:28:07,560 --> 00:28:08,840
NUMBER OF DIFFERENT AREAS THAT 

692
00:28:08,840 --> 00:28:10,600
OVERLAP IN INTEREST AND WE LOOK 

693
00:28:10,600 --> 00:28:12,760
FORWARD TO CONTINUING THOSE 

694
00:28:12,760 --> 00:28:13,160
COLLABORATIONS.

695
00:28:13,160 --> 00:28:17,840
WE ALSO HAVE MS. LORI GERHARD AT

696
00:28:17,840 --> 00:28:19,680
THE ADMINISTRATION FOR COMMUNITY

697
00:28:19,680 --> 00:28:23,360
LIVING JOINING US TODAY.

698
00:28:23,360 --> 00:28:25,880
DR. SOUZA AND MS. GERHARD WILL 

699
00:28:25,880 --> 00:28:27,200
UPDATE US ON HOUSING FOR PEOPLE 

700
00:28:27,200 --> 00:28:28,280
WITH DISABILITIES.

701
00:28:28,280 --> 00:28:30,760
THE PRESENCES WILL BE FOLLOWED 

702
00:28:30,760 --> 00:28:33,200
BY A VIDEO FROM MS. JULIA 

703
00:28:33,200 --> 00:28:36,600
ORLANDO THE DIRECTOR OF THE 

704
00:28:36,600 --> 00:28:37,560
BERGEN COUNTY NEW JERSEY HOUSING

705
00:28:37,560 --> 00:28:40,560
AND SERVICES CENTER PRESENT 

706
00:28:40,560 --> 00:28:43,600
DR. DANIELS SINCE MS. ORLANDO 

707
00:28:43,600 --> 00:28:45,720
COULDN'T JOIN TODAY LIVE BUT ARE

708
00:28:45,720 --> 00:28:46,760
PLEASED SHE WAS ABLE TO 

709
00:28:46,760 --> 00:28:48,480
CONTRIBUTE THE VIDEO 

710
00:28:48,480 --> 00:28:49,920
PRESENTATION.

711
00:28:49,920 --> 00:28:51,760
AT THE END WE'LL HAVE TIME FOR 

712
00:28:51,760 --> 00:28:53,120
QUESTIONS AND DISCUSSION AMONGST

713
00:28:53,120 --> 00:28:54,760
THE IACC MEMBERS.

714
00:28:54,760 --> 00:28:57,000
I JUST WANT TO NOTE, I'LL 

715
00:28:57,000 --> 00:28:58,400
APOLOGIZE, I HAVE ANOTHER 

716
00:28:58,400 --> 00:28:59,160
OBLIGATION AT 2:00.

717
00:28:59,160 --> 00:29:05,240
I'LL BE STEPPING AWAY FOR A FEW 

718
00:29:05,240 --> 00:29:07,320
MINUTES A THAT POINT AND BACK 

719
00:29:07,320 --> 00:29:08,680
THEREAFTER AND HERE FOR THE 

720
00:29:08,680 --> 00:29:09,280
BALANCE OF THE PRESENTATION.

721
00:29:09,280 --> 00:29:10,840
WITH THAT I'LL TURN IT OVER TO 

722
00:29:10,840 --> 00:29:11,560
DR. SOUZA.

723
00:29:11,560 --> 00:29:20,160
>> THANK YOU, JOSH.

724
00:29:20,160 --> 00:29:22,720
I'M IN THE OFFICE OF POLICY 

725
00:29:22,720 --> 00:29:23,680
DEVELOPMENT AND RESEARCH AT THE 

726
00:29:23,680 --> 00:29:26,080
U.S. DEPARTMENT OF HOUSING AND 

727
00:29:26,080 --> 00:29:27,200
URBAN DEVELOPMENT.

728
00:29:27,200 --> 00:29:30,160
I'LL GIVE SOME EXAMPLES OF HUD'S

729
00:29:30,160 --> 00:29:30,760
SUPPORTIVE HOUSING PROGRAM FOR 

730
00:29:30,760 --> 00:29:31,520
PEOPLE WITH DISABILITIES AND 

731
00:29:31,520 --> 00:29:42,400
RELATED RESEARCH.

732
00:29:42,400 --> 00:29:45,200
THESE ARE THE MAJOR TOPICS I'LL 

733
00:29:45,200 --> 00:29:49,200
COVER IN MY PRESENTATION TODAY.

734
00:29:49,200 --> 00:29:55,520
I'D LIKE TO START BY SHARING 

735
00:29:55,520 --> 00:29:58,000
HUD'S MISSION TO HAVE STRONG 

736
00:29:58,000 --> 00:29:59,040
SUSTAINABLE COMMUNITIES AND 

737
00:29:59,040 --> 00:30:00,360
AFFORDABLE HOMES FOR ALL.

738
00:30:00,360 --> 00:30:01,200
THE FIRST THING THAT'S IMPORTANT

739
00:30:01,200 --> 00:30:03,040
TO KEEP IN MIND IS THAT HUD 

740
00:30:03,040 --> 00:30:04,760
SERVES ONLY A FRACTION OF THE 

741
00:30:04,760 --> 00:30:07,520
PEOPLE WHO NEED AND ARE ELIGIBLE

742
00:30:07,520 --> 00:30:11,520
FOR HOUSING ASSISTANCE.

743
00:30:11,520 --> 00:30:15,160
ACCORDING TO THE LATEST REPORT 

744
00:30:15,160 --> 00:30:17,800
TO CONGRESS THERE WERE 13.3 

745
00:30:17,800 --> 00:30:19,520
MILLION UNASSISTED RENTERS WITH 

746
00:30:19,520 --> 00:30:22,680
VERY LOW INCOME IN 2019, BEFORE 

747
00:30:22,680 --> 00:30:23,520
THE PANDEMIC.

748
00:30:23,520 --> 00:30:25,880
THOSE ARE REPRESENTED BY THE 

749
00:30:25,880 --> 00:30:28,360
SQUARES ON THE LEFT SIDE OF THE 

750
00:30:28,360 --> 00:30:30,400
SLIDE BOTH THE LIGHT AND DARK 

751
00:30:30,400 --> 00:30:31,520
GREEN SQUARES.

752
00:30:31,520 --> 00:30:35,240
OF THOSE, 7.8 MILLION HOUSEHOLDS

753
00:30:35,240 --> 00:30:39,200
HAVE WHAT HUD DEFINES AS WORSE 

754
00:30:39,200 --> 00:30:40,960
CASE HOUSING NEEDS.

755
00:30:40,960 --> 00:30:42,320
THESE ARE HOUSEHOLD WHO'S PAY 

756
00:30:42,320 --> 00:30:44,480
MORE THAN 50% OF THEIR INCOME 

757
00:30:44,480 --> 00:30:47,560
TOWARDS RENT, LIVED IN SEVERELY 

758
00:30:47,560 --> 00:30:50,200
INADEQUATE HOUSING OR BOTH.

759
00:30:50,200 --> 00:30:50,960
THE HOUSEHOLDS WITH WORSE CASE 

760
00:30:50,960 --> 00:30:53,280
HOUSING NEEDS ARE REPRESENTED BY

761
00:30:53,280 --> 00:30:55,120
THE DARK GRAY SQUARES ON THE 

762
00:30:55,120 --> 00:30:55,320
LEFT.

763
00:30:55,320 --> 00:30:57,960
ON THE RIGHT YOU CAN SEE THAT 

764
00:30:57,960 --> 00:31:01,120
HUD ASSISTS ABOUT 4.6 MILLION 

765
00:31:01,120 --> 00:31:02,000
HOUSEHOLDS REPRESENTED BY THE 

766
00:31:02,000 --> 00:31:02,960
BLUE SQUARES.

767
00:31:02,960 --> 00:31:05,480
THIS MEANS THAT HUD ASSISTS ONLY

768
00:31:05,480 --> 00:31:10,920
ONE-FOURTH OF THE NEED FOR 

769
00:31:10,920 --> 00:31:17,680
RENTAL HOUSING ASSISTANCE.

770
00:31:17,680 --> 00:31:18,920
HUD HAS THREE MAJOR HOUSING 

771
00:31:18,920 --> 00:31:19,520
ASSISTANCE PROGRAMS.

772
00:31:19,520 --> 00:31:22,480
THE LARGEST ONE IS THE HOUSING 

773
00:31:22,480 --> 00:31:23,560
CHOICE VOUCHER WHICH ASSISTS 

774
00:31:23,560 --> 00:31:29,840
OVER 2.3 MILLION HOUSEHOLDS AND 

775
00:31:29,840 --> 00:31:31,480
ASSISTANCE THAT GOES TO A FAMILY

776
00:31:31,480 --> 00:31:33,600
OR INDIVIDUAL WHO FINDS AN 

777
00:31:33,600 --> 00:31:34,520
AFFORDABLE HOUSING UNIT IN THE 

778
00:31:34,520 --> 00:31:35,080
PRIVATE MARKET.

779
00:31:35,080 --> 00:31:36,920
THE SECOND LARGEST PROGRAM IS 

780
00:31:36,920 --> 00:31:38,800
THE PROJECT-BASED RENTAL 

781
00:31:38,800 --> 00:31:41,040
ASSISTANCE WHICH ASSISTS OVER 

782
00:31:41,040 --> 00:31:43,160
1.2 MILLION HOUSEHOLDS.

783
00:31:43,160 --> 00:31:45,760
THIS IS A RENTAL ASSISTANCE TIED

784
00:31:45,760 --> 00:31:47,600
TO A PROPERTY OR UNIT OWNED BY A

785
00:31:47,600 --> 00:31:49,960
NON-PROFIT ORGANIZATION.

786
00:31:49,960 --> 00:31:52,160
AND THE THIRD LARGEST PROGRAM IS

787
00:31:52,160 --> 00:31:54,120
PUBLIC HOUSING WHICH ASSISTS 

788
00:31:54,120 --> 00:31:55,880
OVER 800,000 HOUSEHOLDS AND THIS

789
00:31:55,880 --> 00:31:59,000
IS A RENTAL ASSISTANCE TIED TO A

790
00:31:59,000 --> 00:32:03,160
PROPERTY THAT IS OWNED BY A 

791
00:32:03,160 --> 00:32:03,720
LOCAL PUBLIC HOUSING AGENCY.

792
00:32:03,720 --> 00:32:06,360
IN ADDITION, HUD HAS TWO SMALLER

793
00:32:06,360 --> 00:32:07,200
SUPPORTIVE HOUSING PROGRAMS.

794
00:32:07,200 --> 00:32:10,000
THE SECTION 202, WHICH IS 

795
00:32:10,000 --> 00:32:12,800
TARGETED TO OLDER ADULTS AND 

796
00:32:12,800 --> 00:32:15,520
ASSISTS OVER 120,000 HOUSEHOLDS 

797
00:32:15,520 --> 00:32:18,760
AND THE SECTION 811 WHICH 

798
00:32:18,760 --> 00:32:20,800
TARGETS PEOPLE WITH DISABILITIES

799
00:32:20,800 --> 00:32:21,400
AND ASSISTS OVER 30,000 

800
00:32:21,400 --> 00:32:23,520
HOUSEHOLDS.

801
00:32:23,520 --> 00:32:25,600
BUT YOU CAN SEE FROM THE COLUMN 

802
00:32:25,600 --> 00:32:27,520
ON THE RIGHT THAT PEOPLE WITH 

803
00:32:27,520 --> 00:32:31,640
DISABILITIES ARE ASSISTED ACROSS

804
00:32:31,640 --> 00:32:35,440
ALL HUD PROGRAMS.

805
00:32:35,440 --> 00:32:39,160
OVER OF THE YEARS THE SHARE OF 

806
00:32:39,160 --> 00:32:43,320
OLDER HOUSEHOLDS HAS INCREASED 

807
00:32:43,320 --> 00:32:44,640
AS THE ASSISTED POPULATION AGES 

808
00:32:44,640 --> 00:32:46,440
AND REMAINS IN ASSISTED HOUSING 

809
00:32:46,440 --> 00:32:49,360
BUT THE SHARE OF NON-ELDERLY 

810
00:32:49,360 --> 00:32:51,200
HOUSEHOLDS WITH DISABILITIES HAS

811
00:32:51,200 --> 00:32:52,280
REMAINED RELATIVELY STABLE.

812
00:32:52,280 --> 00:32:55,560
THAT'S THE BLUE LINE ON THE 

813
00:32:55,560 --> 00:32:56,160
SLIDE.

814
00:32:56,160 --> 00:32:58,800
SO OVER THE PAST 10 YEARS PEOPLE

815
00:32:58,800 --> 00:33:00,320
WITH DISABILITIES REPRESENT 34% 

816
00:33:00,320 --> 00:33:02,960
TO 35% OF HUD-ASSISTED 

817
00:33:02,960 --> 00:33:03,760
HOUSEHOLDS ACCORDING TO HUD 

818
00:33:03,760 --> 00:33:11,760
ADMINISTRATIVE DATA.

819
00:33:11,760 --> 00:33:14,560
THE SECTION 811 PROGRAM ALLOWS 

820
00:33:14,560 --> 00:33:16,240
PEOPLE WITH DISABILITIES TO LIVE

821
00:33:16,240 --> 00:33:19,360
AS IN DEPENDENTLY AS POSSIBLE BY

822
00:33:19,360 --> 00:33:21,200
SUBSIDIZING THE RENT AND 

823
00:33:21,200 --> 00:33:22,600
CONNECTING RESIDENTS TO 

824
00:33:22,600 --> 00:33:24,760
APPROPRIATE AND VOLUNTARY 

825
00:33:24,760 --> 00:33:28,400
SUPPORTIVE SERVICE.

826
00:33:28,400 --> 00:33:29,480
THE PROGRAM OPERATES IN TWO 

827
00:33:29,480 --> 00:33:30,120
WAYS.

828
00:33:30,120 --> 00:33:32,960
FIRST THE TRADITIONAL WAY BY 

829
00:33:32,960 --> 00:33:34,520
PROVIDING CAPITAL GRANTS AND 

830
00:33:34,520 --> 00:33:35,520
OPERATING SUBSIDIES TO 

831
00:33:35,520 --> 00:33:36,920
NON-PROFIT DEVELOPERS OF 

832
00:33:36,920 --> 00:33:37,960
AFFORDABLE HOUSING FOR PERSONS 

833
00:33:37,960 --> 00:33:39,200
WITH DISABILITIES.

834
00:33:39,200 --> 00:33:42,160
SECOND, IN A NEW WAY THAT WAS 

835
00:33:42,160 --> 00:33:44,560
AUTHORIZED BY LAW IN 2012 BY 

836
00:33:44,560 --> 00:33:46,920
PROVIDING PROJECT RENTAL 

837
00:33:46,920 --> 00:33:49,680
ASSISTANCE TO STATE HOUSING 

838
00:33:49,680 --> 00:33:50,160
AGENCIES.

839
00:33:50,160 --> 00:33:53,040
TODAY, I'M GOING TO FOCUS ON THE

840
00:33:53,040 --> 00:33:58,280
SECOND FORM OF ASSISTANCE GIVEN 

841
00:33:58,280 --> 00:33:58,960
TO STATE HOUSINGS.

842
00:33:58,960 --> 00:34:01,640
THE NEW SECTION 811 PROJECT 

843
00:34:01,640 --> 00:34:03,160
RENTAL ASSISTANCE PROGRAM ALSO 

844
00:34:03,160 --> 00:34:05,720
KNOWN AS PRA WAS FIRST 

845
00:34:05,720 --> 00:34:06,200
IMPLEMENTED THROUGH A 

846
00:34:06,200 --> 00:34:09,680
DEMONSTRATION IN 2012.

847
00:34:09,680 --> 00:34:10,760
UNDER THIS PROGRAM, STATE 

848
00:34:10,760 --> 00:34:13,440
HOUSING AGENCY HAVE ENTERED INTO

849
00:34:13,440 --> 00:34:15,000
A PARTNERSHIP WITH STATE AND 

850
00:34:15,000 --> 00:34:16,840
MEDICAID AND HEALTH AND HUMAN 

851
00:34:16,840 --> 00:34:19,560
SERVICES AGENCIES CAN APPLY FOR 

852
00:34:19,560 --> 00:34:20,960
GRANTS THAT SUBSIDIZE THE RENT 

853
00:34:20,960 --> 00:34:23,560
FOR PEOPLE WITH DISABILITIES IN 

854
00:34:23,560 --> 00:34:27,560
AFFORDABLE HOUSING DEVELOPMENTS.

855
00:34:27,560 --> 00:34:29,320
THE PROGRAMS SUBSIDIZE UP TO 25%

856
00:34:29,320 --> 00:34:30,760
OF UNITS TO ENSURE PEOPLE WITH 

857
00:34:30,760 --> 00:34:33,960
DISABILITIES ARE FULLY 

858
00:34:33,960 --> 00:34:36,560
INTEGRATED IN THE COMMUNITY, 

859
00:34:36,560 --> 00:34:38,480
PARTICIPANTS MUST HAVE EXTREMELY

860
00:34:38,480 --> 00:34:40,960
LOW INCOME AT OR BELOW 30% OF 

861
00:34:40,960 --> 00:34:43,560
THE MEDIAN INCOME IN THE AREA, 

862
00:34:43,560 --> 00:34:47,280
THEY MUST BE 18 TO 61 YEARS OLD 

863
00:34:47,280 --> 00:34:48,760
AT THE TIME OF ADMISSION AND 

864
00:34:48,760 --> 00:34:50,560
MUST BE ELIGIBLE FOR MEDICAID OR

865
00:34:50,560 --> 00:34:55,560
OTHER HEALTH AND HUMAN SERVICES.

866
00:34:55,560 --> 00:35:01,080
HUD AWARDED OVER $340 MILLION IN

867
00:35:01,080 --> 00:35:02,800
RENTAL ASSISTANCE GRANTS SINCE 

868
00:35:02,800 --> 00:35:04,760
2012 AND OVER 3,000 HOUSEHOLDS 

869
00:35:04,760 --> 00:35:07,760
HAVE BEEN ASSISTED SINCE THE 

870
00:35:07,760 --> 00:35:10,240
PROGRAM STARTED.

871
00:35:10,240 --> 00:35:12,880
THE POPULATION ASSISTED IS SPLIT

872
00:35:12,880 --> 00:35:14,360
BETWEEN TWO MAJOR GROUPS.

873
00:35:14,360 --> 00:35:15,920
FIRST, PEOPLE EXPERIENCING 

874
00:35:15,920 --> 00:35:19,200
HOMELESS OR AT RISK OF 

875
00:35:19,200 --> 00:35:20,160
HOMELESSNESS AND PEOPLE 

876
00:35:20,160 --> 00:35:21,200
TRANSITIONING OUT OF 

877
00:35:21,200 --> 00:35:22,960
INSTITUTIONAL CARE OR AT RISK OF

878
00:35:22,960 --> 00:35:27,200
PLACEMENT IN AN INSTITUTION SUCH

879
00:35:27,200 --> 00:35:30,560
AS A NURSING HOME.

880
00:35:30,560 --> 00:35:32,360
HUD CONDUCTED AN EVALUATION OF 

881
00:35:32,360 --> 00:35:33,840
THE SECTION 811 PROGRAM THAT 

882
00:35:33,840 --> 00:35:34,960
ASSESSED THE EFFECTIVENESS 

883
00:35:34,960 --> 00:35:38,680
COMPARED TO SIMILAR HOUSEHOLDS 

884
00:35:38,680 --> 00:35:41,360
IN OTHER HUD PROGRAMS AND 

885
00:35:41,360 --> 00:35:42,440
WITHOUT HOUSING ASSISTANCE.

886
00:35:42,440 --> 00:35:45,280
THE EVALUATION WAS LIMITED TO 

887
00:35:45,280 --> 00:35:46,960
SIX STATES THAT MADE MORE 

888
00:35:46,960 --> 00:35:48,560
PROGRESS MOVING PEOPLE TO 

889
00:35:48,560 --> 00:35:50,320
ASSISTED HOUSING AND THE 

890
00:35:50,320 --> 00:35:51,240
EVALUATION FOUND THE PROGRAM WAS

891
00:35:51,240 --> 00:35:57,160
VERY WELL TARGETED.

892
00:35:57,160 --> 00:36:00,160
THE 811 PRA RESIDENTS HAVE MORE 

893
00:36:00,160 --> 00:36:01,480
NEEDS THAN RESIDENTS IN ANY 

894
00:36:01,480 --> 00:36:02,240
OTHER HUD PROGRAM.

895
00:36:02,240 --> 00:36:05,000
IN THOSE STATES, THE PROGRAM 

896
00:36:05,000 --> 00:36:07,280
SERVED THE POPULATION WITH HIGH 

897
00:36:07,280 --> 00:36:09,200
HEALTH CARE NEEDS AND THIS IS A 

898
00:36:09,200 --> 00:36:09,880
TESTAMENT TO THE SUCCESS OF THE 

899
00:36:09,880 --> 00:36:11,080
HOUSING AND HEALTH PARTNERSHIPS 

900
00:36:11,080 --> 00:36:16,160
AT THE LOCAL LEVEL.

901
00:36:16,160 --> 00:36:18,200
811 PRA RESIDENTS REPORTED HIGH 

902
00:36:18,200 --> 00:36:20,000
LEVELS OF AUTONOMY AND 

903
00:36:20,000 --> 00:36:23,360
INDEPENDENCE WHICH VAL DATES THE

904
00:36:23,360 --> 00:36:24,560
COMMUNITY INTEGRATION FOCUS OF 

905
00:36:24,560 --> 00:36:25,720
THE PROGRAM AND NEIGHBORHOOD 

906
00:36:25,720 --> 00:36:27,200
QUALITY INDICATORS WERE MIXED IN

907
00:36:27,200 --> 00:36:28,920
THE STUDY.

908
00:36:28,920 --> 00:36:32,480
WE FOUND 811 PRA RESIDENTS LIVED

909
00:36:32,480 --> 00:36:34,200
IN NEIGHBORHOODS WITH HIGHER 

910
00:36:34,200 --> 00:36:35,560
POVERTY RATES BUT WITH GREATER 

911
00:36:35,560 --> 00:36:38,400
ACCESS TO PUBLIC TRANSIT AND 

912
00:36:38,400 --> 00:36:39,280
WITH HIGHER ACCESS TO 

913
00:36:39,280 --> 00:36:41,400
WALKABILITY.

914
00:36:41,400 --> 00:36:42,680
-- COMPARED TO SIMILAR PEOPLE IN

915
00:36:42,680 --> 00:36:48,920
OTHER HUD PROGRAMS.

916
00:36:48,920 --> 00:36:50,640
I ALSO WANTED TO SHARE RESULTS 

917
00:36:50,640 --> 00:36:53,160
FROM AN IN-PERSON SURVEY WHERE 

918
00:36:53,160 --> 00:36:55,200
WE HEARD DIRECTLY FROM RESIDENTS

919
00:36:55,200 --> 00:36:57,560
ABOUT THEIR EXPERIENCES IN THE 

920
00:36:57,560 --> 00:36:58,200
811 PRA PROGRAM.

921
00:36:58,200 --> 00:36:59,600
IN THIS PRESENTATION I'M GOING 

922
00:36:59,600 --> 00:37:03,240
TO FOCUS ON TWO AREAS THAT WE 

923
00:37:03,240 --> 00:37:05,760
WERE INTERESTED IN.

924
00:37:05,760 --> 00:37:07,560
FIRST, WHETHER 811 PRA RESIDENTS

925
00:37:07,560 --> 00:37:09,200
WERE SUPPORTED IN THEIR HOUSING 

926
00:37:09,200 --> 00:37:11,360
SEARCH AND LIVING AT THE 

927
00:37:11,360 --> 00:37:12,480
PROPERTY AND SECOND WHETHER 

928
00:37:12,480 --> 00:37:14,040
RESIDENTS WERE CONNECTED TO 

929
00:37:14,040 --> 00:37:16,240
COMMUNITY-BASED SERVICES.

930
00:37:16,240 --> 00:37:20,400
AND WE FOUND THAT A MAJORITY OF 

931
00:37:20,400 --> 00:37:22,280
811 PRA RESIDENTS REPORT 

932
00:37:22,280 --> 00:37:24,080
RECEIVING SUPPORT AND OTHER 

933
00:37:24,080 --> 00:37:25,680
SERVICES THAT MEET THEIR NEED.

934
00:37:25,680 --> 00:37:28,960
WE ALSO FOUND THAT A MAJORITY OF

935
00:37:28,960 --> 00:37:30,720
811 RESIDENTS REPORT A POSITIVE 

936
00:37:30,720 --> 00:37:33,200
EXPERIENCE WITH THEIR HOME-BASED

937
00:37:33,200 --> 00:37:34,960
CARE BUT SOME RESIDENTS REPORT 

938
00:37:34,960 --> 00:37:38,760
GAPS IN SERVICES SUCH AS WITH 

939
00:37:38,760 --> 00:37:39,400
ASSISTANCE WITH BATHING, MEALS 

940
00:37:39,400 --> 00:37:43,600
AND MEDICATION.

941
00:37:43,600 --> 00:37:44,920
THE STUDY ADDRESSED MANY OTHER 

942
00:37:44,920 --> 00:37:45,960
AREAS AND IF YOU WANT TO LEARN 

943
00:37:45,960 --> 00:37:47,760
MORE I INCLUDED A LINK TO THE 

944
00:37:47,760 --> 00:37:58,320
REPORT ON THIS SLIDE.

945
00:37:58,320 --> 00:37:59,560
AND IT ASSISTS NON-ELDERLY 

946
00:37:59,560 --> 00:38:02,200
PEOPLE WITH DISABILITIES AND 

947
00:38:02,200 --> 00:38:03,920
PEOPLE TRANSITIONING OUT OR AT 

948
00:38:03,920 --> 00:38:06,640
RISK OF INSTITUTIONAL CARE AND 

949
00:38:06,640 --> 00:38:07,880
PEOPLE EXPERIENCING 

950
00:38:07,880 --> 00:38:09,480
HOMELESSNESS, PREVIOUS HOMELESS 

951
00:38:09,480 --> 00:38:15,160
OR AT RISK OF HOMELESSNESS.

952
00:38:15,160 --> 00:38:16,880
LOCAL AGENCIES ADMINISTER THE 

953
00:38:16,880 --> 00:38:22,360
FUNDS AND ARE ENCOURAGED TO 

954
00:38:22,360 --> 00:38:24,120
PARTNER WITH HOMELESSNESS 

955
00:38:24,120 --> 00:38:24,760
SERVICES.

956
00:38:24,760 --> 00:38:27,280
HUD AWARD ABOUT 67,000 VOUCHERS 

957
00:38:27,280 --> 00:38:31,440
TO PUBLIC HOUSING AGENCIES AND 

958
00:38:31,440 --> 00:38:33,360
THERE CURRENTLY 45,000 S 

959
00:38:33,360 --> 00:38:34,920
ASSISTED AND ANOTHER 20,000 

960
00:38:34,920 --> 00:38:35,640
VOUCHERS AVAILABLE TO NEW 

961
00:38:35,640 --> 00:38:43,520
HOUSEHOLDS.

962
00:38:43,520 --> 00:38:44,960
THE EMERGENCY HOUSING VOUCHER IS

963
00:38:44,960 --> 00:38:48,560
A NEW BUT TEMPORARY FORM OF 

964
00:38:48,560 --> 00:38:51,280
ASSISTANCE CREATED UNDER THE 

965
00:38:51,280 --> 00:38:52,880
AMERICAN RESCUE PLAN TO 

966
00:38:52,880 --> 00:38:54,760
SUBSIDIZE THE RENT OF 

967
00:38:54,760 --> 00:38:56,480
INDIVIDUALS AND FAMILIES FACING 

968
00:38:56,480 --> 00:38:58,280
HOUSING INSTABILITY DURING THE 

969
00:38:58,280 --> 00:38:58,560
PANDEMIC.

970
00:38:58,560 --> 00:39:01,760
THE PROGRAM TARGETS PEOPLE 

971
00:39:01,760 --> 00:39:03,000
EXPERIENCING HOMELESSNESS AT 

972
00:39:03,000 --> 00:39:05,720
RISK OF HOMELESSNESS, RECENTLY 

973
00:39:05,720 --> 00:39:08,680
HOMELESS OR PEOPLE FLEEING OR 

974
00:39:08,680 --> 00:39:10,200
ATTEMPTING TO FLEE DOMESTIC 

975
00:39:10,200 --> 00:39:11,520
VIOLENCE, SEXUAL ASSAULT, 

976
00:39:11,520 --> 00:39:16,120
STALKING OR HUMAN TRAFFICKING.

977
00:39:16,120 --> 00:39:18,960
THE PROGRAM RECOGNIZES THE 

978
00:39:18,960 --> 00:39:20,600
HIGHER BARRIERS FACED BY THE 

979
00:39:20,600 --> 00:39:23,240
TARGET POPULATION TO BE PLACED 

980
00:39:23,240 --> 00:39:26,400
IN ASSISTED HOUSING AND PROVIDED

981
00:39:26,400 --> 00:39:27,560
DOLLARS FOR HOUSING ASSISTANCE 

982
00:39:27,560 --> 00:39:29,560
SERVICE CAN BE USED FOR SECURITY

983
00:39:29,560 --> 00:39:33,240
AND UTILITY DEPOSITS, MOVING 

984
00:39:33,240 --> 00:39:35,200
EXPENSES, LANDLORD INCENTIVES 

985
00:39:35,200 --> 00:39:38,560
AND OTHER HOUSING RELATED 

986
00:39:38,560 --> 00:39:38,880
EXPENSES.

987
00:39:38,880 --> 00:39:41,720
HUD HAS NEVER PROVIDED THIS TYPE

988
00:39:41,720 --> 00:39:44,360
OF ASSISTANCE OTHER THAN FOR 

989
00:39:44,360 --> 00:39:45,400
LIMITED MOBILITY DEMONSTRATIONS 

990
00:39:45,400 --> 00:39:47,960
AND WE ANTICIPATE THE FUNDING 

991
00:39:47,960 --> 00:39:51,200
WILL HELP IMPROVE SUCCESS RATE 

992
00:39:51,200 --> 00:39:53,400
OF FAMILIES UNITS.

993
00:39:53,400 --> 00:39:55,120
LIKE ALL HOUSING VOUCHERS THE 

994
00:39:55,120 --> 00:39:57,200
PROGRAM IS ADMINISTERED BY LOCAL

995
00:39:57,200 --> 00:39:59,280
PUBLIC HOUSING AGENCIES BUT IN 

996
00:39:59,280 --> 00:40:02,000
THIS PROGRAM HOUSING AGENCIES 

997
00:40:02,000 --> 00:40:06,000
ARE REQUIRED TO GET PARTICIPANT 

998
00:40:06,000 --> 00:40:07,520
REFERRALS FROM HOMELESSNESS 

999
00:40:07,520 --> 00:40:08,720
ASSISTANCE AGENCIES.

1000
00:40:08,720 --> 00:40:11,560
OVER 16,000 HOUSEHOLD HAVE BEEN 

1001
00:40:11,560 --> 00:40:13,760
ASSISTED AND ANOTHER 927 

1002
00:40:13,760 --> 00:40:14,440
HOUSEHOLDS RECEIVED A VOUCHER 

1003
00:40:14,440 --> 00:40:21,960
AND NOW LOOK FOR A RENTAL UNIT.

1004
00:40:21,960 --> 00:40:23,520
SO I TALKED ABOUT THREE MAJOR 

1005
00:40:23,520 --> 00:40:24,480
HUD PROGRAMS THAT TARGET PEOPLE 

1006
00:40:24,480 --> 00:40:25,520
WITH DISABILITIES IN DIFFERENT 

1007
00:40:25,520 --> 00:40:27,160
WAYS AND SOME OF THE RELATED 

1008
00:40:27,160 --> 00:40:29,320
EVALUATION AND NOW I'M GOING 

1009
00:40:29,320 --> 00:40:31,960
FOCUS ON TWO RESEARCH AREAS THAT

1010
00:40:31,960 --> 00:40:33,080
ARE CRITICAL TO UNDERSTAND THE 

1011
00:40:33,080 --> 00:40:35,520
NEEDS AND BARRIERS THAT PEOPLE 

1012
00:40:35,520 --> 00:40:36,600
WITH DISABILITIES EXPERIENCE IN 

1013
00:40:36,600 --> 00:40:39,920
THE RENTAL HOUSING MARKET.

1014
00:40:39,920 --> 00:40:45,280
THE FIRST IS THE HOUSING 

1015
00:40:45,280 --> 00:40:48,280
DISCRIMINATION RESEARCH.

1016
00:40:48,280 --> 00:40:52,880
THERE'S SEVERAL FEDERAL 

1017
00:40:52,880 --> 00:40:53,560
NON-DISCRIMINATION LAWS AND THE 

1018
00:40:53,560 --> 00:40:56,680
OFFICE OF POLICY AND DEVELOPMENT

1019
00:40:56,680 --> 00:40:58,360
RESEARCH HAS BEEN STUDYING THE 

1020
00:40:58,360 --> 00:41:00,160
PRESENCE AND EXTENT OF HOUSING 

1021
00:41:00,160 --> 00:41:03,200
DISCRIMINATION IN THE RENTAL 

1022
00:41:03,200 --> 00:41:04,320
MARKET FOR OVER 40 YEARS.

1023
00:41:04,320 --> 00:41:08,560
HERE ARE SOME EXAMPLES OF 

1024
00:41:08,560 --> 00:41:09,560
HOUSING DISCRIMINATION RESEARCH 

1025
00:41:09,560 --> 00:41:12,560
ON THE BASIS OF DISABILITIES AND

1026
00:41:12,560 --> 00:41:13,760
THIS STUDIES ASSESS HOUSING 

1027
00:41:13,760 --> 00:41:14,880
DISCRIMINATION AGAINST PEOPLE 

1028
00:41:14,880 --> 00:41:18,400
DEAF OR HARD OF HEARING, PEOPLE 

1029
00:41:18,400 --> 00:41:20,960
WHO USING WHEELCHAIRS AND PEOPLE

1030
00:41:20,960 --> 00:41:22,680
WITH MENTAL ILLNESS AND 

1031
00:41:22,680 --> 00:41:23,520
INTELLECTUAL OR DEVELOPMENTAL 

1032
00:41:23,520 --> 00:41:26,120
DISABILITIES.

1033
00:41:26,120 --> 00:41:27,680
ALL THE STUDIES FOUND EVIDENCE 

1034
00:41:27,680 --> 00:41:31,520
OF UNFAVORABLE TREATMENT DURING 

1035
00:41:31,520 --> 00:41:32,120
THE HOUSING SEARCH PROCESS.

1036
00:41:32,120 --> 00:41:35,160
AND FOR A FULL LIST OF ALL 

1037
00:41:35,160 --> 00:41:35,800
HOUSING DISCRIMINATION RESEARCH 

1038
00:41:35,800 --> 00:41:39,560
YOU CAN CHECK THE LINK ON THE 

1039
00:41:39,560 --> 00:41:44,000
SLIDE.

1040
00:41:44,000 --> 00:41:45,080
ANOTHER RESEARCH AREA THAT HAS 

1041
00:41:45,080 --> 00:41:46,360
BEEN CRITICAL TO UNDERSTAND THE 

1042
00:41:46,360 --> 00:41:48,160
PREVALENCE AND NEEDS OF PEOPLE 

1043
00:41:48,160 --> 00:41:50,160
WITH DISABILITIES IN 

1044
00:41:50,160 --> 00:41:51,240
HUD-ASSISTED HOUSING IS THE 

1045
00:41:51,240 --> 00:41:56,000
EFFORT TO LINK HEALTH AND 

1046
00:41:56,000 --> 00:41:56,960
HOUSING DATA.

1047
00:41:56,960 --> 00:41:58,800
ONE EXAMPLE IS THE ONGOING 

1048
00:41:58,800 --> 00:42:00,720
COLLABORATION BETWEEN HUD AND 

1049
00:42:00,720 --> 00:42:03,120
THE NATIONAL CENTER FOR HEALTH 

1050
00:42:03,120 --> 00:42:07,160
STATISTICS AND CHS TO LINK 

1051
00:42:07,160 --> 00:42:08,600
HEALTH SURVEY DATA TO HUD 

1052
00:42:08,600 --> 00:42:09,480
ADMINISTRATIVE DATA.

1053
00:42:09,480 --> 00:42:13,640
THIS IS AN ONGOING COLLABORATION

1054
00:42:13,640 --> 00:42:15,520
THAT UPDATES HOUSING HEALTH 

1055
00:42:15,520 --> 00:42:16,960
LINKAGES CONTINUOUSLY.

1056
00:42:16,960 --> 00:42:19,800
IN THE LINK SHOWN IN THE, YOU 

1057
00:42:19,800 --> 00:42:21,200
CAN FIND MORE INFORMATION ABOUT 

1058
00:42:21,200 --> 00:42:23,240
THE CONTENT OF THE LINK DATA AND

1059
00:42:23,240 --> 00:42:27,200
INFORMATION ABOUT HOW 

1060
00:42:27,200 --> 00:42:30,760
RESEARCHERS CAN ACCESS IT.

1061
00:42:30,760 --> 00:42:32,400
HERE ARE SOME EXAMPLES OF 

1062
00:42:32,400 --> 00:42:34,760
TECHNICAL REPORTS THAT HAVE USED

1063
00:42:34,760 --> 00:42:38,360
HUD AND NCHS LINK DATA TO CREATE

1064
00:42:38,360 --> 00:42:40,560
A PICTURE OF HUD ASSISTED ADULTS

1065
00:42:40,560 --> 00:42:41,360
AND CHILDREN'S HEALTH AND YOU 

1066
00:42:41,360 --> 00:42:43,560
CAN ACCESS THE REPORTS BY 

1067
00:42:43,560 --> 00:42:44,160
CLICKING THE PICTURE ON THE 

1068
00:42:44,160 --> 00:42:47,960
SLIDE.

1069
00:42:47,960 --> 00:42:50,200
AND THESE ARE SOME EXAMPLES OF 

1070
00:42:50,200 --> 00:42:51,800
STUDIES THAT HAVE USED THE LINK 

1071
00:42:51,800 --> 00:42:53,560
DATA TO UNDERSTAND THE 

1072
00:42:53,560 --> 00:42:54,760
PREVALENCE AND HEALTH CARE NEEDS

1073
00:42:54,760 --> 00:42:57,280
OF PEOPLE WITH DISABILITIES IN 

1074
00:42:57,280 --> 00:43:03,240
HUD-ASSISTED PROGRAMS.

1075
00:43:03,240 --> 00:43:06,440
IN THE STUDY WE FOUND A HIGHER 

1076
00:43:06,440 --> 00:43:08,320
PREVALENCE OF DISABILITY AMONG 

1077
00:43:08,320 --> 00:43:09,040
HUD-ASSISTED HOUSEHOLDS COMPARED

1078
00:43:09,040 --> 00:43:12,280
TO HUD ADMINISTRATIVE DATA AND 

1079
00:43:12,280 --> 00:43:13,880
FOUND THAT HUD-ASSISTED ADULTS 

1080
00:43:13,880 --> 00:43:15,080
WITH DISABILITIES ARE MORE 

1081
00:43:15,080 --> 00:43:17,360
LIKELY TO BE CONNECTED TO THE 

1082
00:43:17,360 --> 00:43:19,080
HEALTH CARE SYSTEM THAN THOSE 

1083
00:43:19,080 --> 00:43:21,760
WITHOUT DISABILITIES BUT HAVE 

1084
00:43:21,760 --> 00:43:25,960
HIGHER ODDS OF REPORTING UNMET 

1085
00:43:25,960 --> 00:43:27,560
CARE AND HIGHER ODDS OF GOING TO

1086
00:43:27,560 --> 00:43:28,960
AN EMERGENCY ROOM VISIT IN THE 

1087
00:43:28,960 --> 00:43:30,000
PAST 12 MONTHS.

1088
00:43:30,000 --> 00:43:32,040
WE ENCOURAGE RESEARCHERS TO USE 

1089
00:43:32,040 --> 00:43:33,680
THE LINK DATA, THIS AND OTHER 

1090
00:43:33,680 --> 00:43:35,520
ONES AND HELP US REFINE OUR 

1091
00:43:35,520 --> 00:43:37,760
INFORMATION OF THE CONNECTION 

1092
00:43:37,760 --> 00:43:40,920
BETWEEN HOUSING AND HEALTH AND 

1093
00:43:40,920 --> 00:43:44,560
IMPROVE OUR PROGRAMS AS THEY 

1094
00:43:44,560 --> 00:43:46,360
SERVE MORE VULNERABLE PEOPLE AND

1095
00:43:46,360 --> 00:43:56,440
HAVE HIGHER HEALTH CARE NEEDS.

1096
00:43:56,440 --> 00:43:56,840
THE.

1097
00:43:56,840 --> 00:43:57,760
>> THANK YOU, VERY MUCH, 

1098
00:43:57,760 --> 00:43:58,440
DR. SOUZA.

1099
00:43:58,440 --> 00:43:59,840
WE'LL HOLD QUESTIONS IN THE THE 

1100
00:43:59,840 --> 00:44:03,200
END OF THE PRESENTATIONS SO 

1101
00:44:03,200 --> 00:44:07,560
WE'LL TO LORI GERHARD FROM ACL.

1102
00:44:07,560 --> 00:44:21,200
LORI.

1103
00:44:21,200 --> 00:44:22,200
>> THANK YOU.

1104
00:44:22,200 --> 00:44:23,960
IT'S EXCITING TO SHARE 

1105
00:44:23,960 --> 00:44:25,800
INFORMATION ON OUR NEWLY FORMED 

1106
00:44:25,800 --> 00:44:27,560
HOUSING AND SERVICES RESEARCH 

1107
00:44:27,560 --> 00:44:33,720
CENTER.

1108
00:44:33,720 --> 00:44:37,960
I HAVE CHALLENGES, SOLUTIONS AND

1109
00:44:37,960 --> 00:44:41,120
AND NEW HOUSING RESOURCE CENTER 

1110
00:44:41,120 --> 00:44:43,960
AND HHS HUD PARTNERSHIP.

1111
00:44:43,960 --> 00:44:46,720
 DIFFICULT TO FIND AND OBTAIN 

1112
00:44:46,720 --> 00:44:48,360
AFFORDABLE AND ACCESSIBLE 

1113
00:44:48,360 --> 00:44:48,800
HOUSING.

1114
00:44:48,800 --> 00:44:51,240
MORE THAN 15% OF U.S. HOUSEHOLDS

1115
00:44:51,240 --> 00:44:53,240
INCLUDE SOMEONE WITH A 

1116
00:44:53,240 --> 00:44:55,320
DISABILITY BUT ONLY 6% OF HOMES 

1117
00:44:55,320 --> 00:45:00,040
NATIONWIDE ARE ACCESSIBLE.

1118
00:45:00,040 --> 00:45:02,360
1% IS WHEEL CHAIR ACCESSIBLE AND

1119
00:45:02,360 --> 00:45:05,760
LESS THAN 6% CAN ACCOMMODATE 

1120
00:45:05,760 --> 00:45:06,800
MODERATE DISABILITIES.

1121
00:45:06,800 --> 00:45:09,760
THIS IS A CHALLENGE THAT WE 

1122
00:45:09,760 --> 00:45:10,000
CONFRONT.

1123
00:45:10,000 --> 00:45:12,760
A 2021 REPORT FOUND THERE WERE 

1124
00:45:12,760 --> 00:45:14,960
ONLY 40 AFFORDABLE AND AVAILABLE

1125
00:45:14,960 --> 00:45:18,240
HOMES FOR EVERY 100 EXTREMELY 

1126
00:45:18,240 --> 00:45:19,760
LOW-INCOME RENTER HOUSEHOLDS 

1127
00:45:19,760 --> 00:45:23,360
NATIONWIDE.

1128
00:45:23,360 --> 00:45:25,400
40% OF RENTER HOUSEHOLDS WERE 

1129
00:45:25,400 --> 00:45:27,560
COST BURDEN AND MORE THAN 20% 

1130
00:45:27,560 --> 00:45:31,520
WERE SEVERELY COST BURDEN.

1131
00:45:31,520 --> 00:45:33,560
SO HUD DEFINES RENT BURDEN AS 

1132
00:45:33,560 --> 00:45:38,320
SPENDING MORE THAN 30% OF YOUR 

1133
00:45:38,320 --> 00:45:42,480
INCOME ON HOUSING AND SEVERE 

1134
00:45:42,480 --> 00:45:46,480
RENT BURDEN IS OVER 70%.

1135
00:45:46,480 --> 00:45:48,480
SEVERELY COST-BURDENED RENTERS 

1136
00:45:48,480 --> 00:45:50,280
HAVE TO MAKE DECISIONS HOW TO 

1137
00:45:50,280 --> 00:45:54,600
SPEND THE LIMITED FUNDS.

1138
00:45:54,600 --> 00:45:58,160
FOR INSTANCE, IN THE LOWEST 

1139
00:45:58,160 --> 00:46:01,440
INCOME QUARTILE SPEND 38% LESS 

1140
00:46:01,440 --> 00:46:04,720
ON FOOD AND 70% LESS ON HEALTH 

1141
00:46:04,720 --> 00:46:06,560
CARE THAN OTHERWISE SIMILAR 

1142
00:46:06,560 --> 00:46:07,640
RENTERS LIVING IN HOUSING THEY 

1143
00:46:07,640 --> 00:46:19,400
COULD AFFORD.

1144
00:46:19,400 --> 00:46:20,600
HOMELESSNESS IS GROWING AMONG 

1145
00:46:20,600 --> 00:46:22,360
PEOPLE WITH DISABILITIES AND 

1146
00:46:22,360 --> 00:46:27,040
OLDER ADULTS.

1147
00:46:27,040 --> 00:46:32,080
HUD'S 2018 ANNUAL HOMELESS 

1148
00:46:32,080 --> 00:46:35,560
ASSESSMENT REPORT SAYS 48.5% 

1149
00:46:35,560 --> 00:46:38,640
REPORT HAVING A DISABILITY THAT 

1150
00:46:38,640 --> 00:46:41,120
USE HOMELESSNESS SHELTERS.

1151
00:46:41,120 --> 00:46:43,200
THAT'S APPROXIMATELY 550,000 

1152
00:46:43,200 --> 00:46:43,480
PEOPLE.

1153
00:46:43,480 --> 00:46:45,720
AND THE NUMBER OF SHELTERED 

1154
00:46:45,720 --> 00:46:49,680
HOMELESS AGE 51 TO 61 INCREASED 

1155
00:46:49,680 --> 00:46:54,960
FROM ABOUT 216,000 IN 2007 TO 

1156
00:46:54,960 --> 00:46:58,040
249,000 IN 2017.

1157
00:46:58,040 --> 00:46:59,560
THE NUMBER OF PEOPLE 

1158
00:46:59,560 --> 00:47:01,560
EXPERIENCING SHELTER AND 

1159
00:47:01,560 --> 00:47:03,240
HOMELESSNESS ROSE FOR THOSE 62 

1160
00:47:03,240 --> 00:47:05,520
YEARS OF AGE AND OLDER.

1161
00:47:05,520 --> 00:47:10,440
FROM 46,000 TO 76,500.

1162
00:47:10,440 --> 00:47:14,800
OLDER ADULTS NOW MAKE UP 23% OF 

1163
00:47:14,800 --> 00:47:17,800
THE SHELTERED HOMELESS 

1164
00:47:17,800 --> 00:47:18,320
POPULATION UP FROM 2007.

1165
00:47:18,320 --> 00:47:21,240
THE NUMBERS ARE GOING IN THE 

1166
00:47:21,240 --> 00:47:23,800
WRONG DIRECTION.

1167
00:47:23,800 --> 00:47:26,560
HOMELESSNESS IS A SIGNIFICANT 

1168
00:47:26,560 --> 00:47:28,400
CHALLENGE AFFECTING MANY PEOPLE.

1169
00:47:28,400 --> 00:47:34,360
NEARLY 900,000 PEOPLE FALL INTO 

1170
00:47:34,360 --> 00:47:36,240
HOMELESSNESS HAPPENS EACH YEAR 

1171
00:47:36,240 --> 00:47:39,280
AND SOMETHING OCCURS WHERE THEY 

1172
00:47:39,280 --> 00:47:42,640
HAD A HOME AND BECOME HOMELESS.

1173
00:47:42,640 --> 00:47:47,120
OVER 580,000 PEOPLE EXPERIENCED 

1174
00:47:47,120 --> 00:47:49,360
HOMELESSNESS ON A NIGHT IN 

1175
00:47:49,360 --> 00:47:51,840
JANUARY AND BETWEEN 2017 AND 

1176
00:47:51,840 --> 00:47:54,560
2020 THE POINT IN TIME COUNT 

1177
00:47:54,560 --> 00:47:59,560
SHOWED AN AVERAGE OF 562,430 

1178
00:47:59,560 --> 00:48:01,560
PEOPLE EXPERIENCING 

1179
00:48:01,560 --> 00:48:02,120
HOMELESSNESS.

1180
00:48:02,120 --> 00:48:02,760
PEOPLE EXPERIENCING HOMELESSNESS

1181
00:48:02,760 --> 00:48:04,560
ARE NINE TIMES MORE LIKELY TO 

1182
00:48:04,560 --> 00:48:09,960
DIE FROM AN OPIOID OVERDOSE THAN

1183
00:48:09,960 --> 00:48:11,400
THOSE STABLY HOUSED.

1184
00:48:11,400 --> 00:48:14,760
SOME OF THE ROOT CAUSES FOR 

1185
00:48:14,760 --> 00:48:16,360
HOMELESSNESS INCLUDE POVERTY, 

1186
00:48:16,360 --> 00:48:17,360
DOMESTIC VIOLENCE PARTICULARLY 

1187
00:48:17,360 --> 00:48:19,960
FOR WOMEN, ACUTE PHYSICAL OR 

1188
00:48:19,960 --> 00:48:21,240
BEHAVIORAL HEALTH CRISES, 

1189
00:48:21,240 --> 00:48:23,560
TRANSITION FROM OTHER SYSTEMS 

1190
00:48:23,560 --> 00:48:27,480
AND INSTITUTIONAL SETTINGS.

1191
00:48:27,480 --> 00:48:30,400
SO IN ADDITION TO SOME OF THE 

1192
00:48:30,400 --> 00:48:32,520
CHALLENGES WE CONFRONT WITH 

1193
00:48:32,520 --> 00:48:33,880
HOUSING THERE'S ALSO CHALLENGES 

1194
00:48:33,880 --> 00:48:38,680
IN FINDING, NAVIGATING AND 

1195
00:48:38,680 --> 00:48:39,280
OBTAINING SERVICES.

1196
00:48:39,280 --> 00:48:40,600
PEOPLE OFTEN AREN'T AWARE OF 

1197
00:48:40,600 --> 00:48:43,560
SERVICES AND THE ARRAY OF 

1198
00:48:43,560 --> 00:48:45,280
FUNDING STREAMS THAT PROVIDE 

1199
00:48:45,280 --> 00:48:50,360
SERVICE COMPLEX AND DIFFICULT TO

1200
00:48:50,360 --> 00:48:52,840
NAVIGATE AND PROGRAM INNOVATION 

1201
00:48:52,840 --> 00:48:56,560
AND DISABILITY AGING, HEALTH AND

1202
00:48:56,560 --> 00:48:58,920
HOUSING SECTOR SUCCESS 

1203
00:48:58,920 --> 00:48:59,600
STRATEGIES MAY BE ADDITIONAL IN 

1204
00:48:59,600 --> 00:49:01,200
STATES AND COMMUNITY.

1205
00:49:01,200 --> 00:49:02,480
WE KNOW IN SOME POCKETS THEY 

1206
00:49:02,480 --> 00:49:03,520
SOLVED THE CHALLENGE BUT WE 

1207
00:49:03,520 --> 00:49:05,400
DON'T ALWAYS KNOW HOW TO SPREAD 

1208
00:49:05,400 --> 00:49:07,760
THE INNOVATION ACROSS THE 

1209
00:49:07,760 --> 00:49:12,960
COUNTRY.

1210
00:49:12,960 --> 00:49:14,000
SO THERE'S SEVERAL THINGS 

1211
00:49:14,000 --> 00:49:15,560
UNDERWAY TO BEGIN TO HELP US ON 

1212
00:49:15,560 --> 00:49:17,480
THE PATH TO FINDING THE 

1213
00:49:17,480 --> 00:49:17,760
SOLUTIONS.

1214
00:49:17,760 --> 00:49:22,760
THE FIRST IS THE AMERICAN RESCUE

1215
00:49:22,760 --> 00:49:23,480
PLAN INVESTMENTS.

1216
00:49:23,480 --> 00:49:25,360
AS DR. SOUZA MENTIONED, THERE'S 

1217
00:49:25,360 --> 00:49:27,240
ADDITIONAL HOUSING VOUCHERS THAT

1218
00:49:27,240 --> 00:49:29,120
WERE ISSUED UNDER THE AMERICAN 

1219
00:49:29,120 --> 00:49:30,320
RESCUE PLAN AND PARTICULARLY I 

1220
00:49:30,320 --> 00:49:33,200
WANT TO CALL OUT THE 70,000 

1221
00:49:33,200 --> 00:49:36,320
EMERGENCY HOUSING VOUCHERS.

1222
00:49:36,320 --> 00:49:37,800
WE'VE HEARD FROM STATES THESE 

1223
00:49:37,800 --> 00:49:39,760
EMERGENCY HOUSING VOUCHERS WITH 

1224
00:49:39,760 --> 00:49:41,440
SOME OF THE WRAP-AROUND SUPPORTS

1225
00:49:41,440 --> 00:49:43,560
THEY PROVIDE ARE INSTRUMENTAL IN

1226
00:49:43,560 --> 00:49:47,560
HELPING PEOPLE OBTAIN STABLE 

1227
00:49:47,560 --> 00:49:50,800
HOUSING THE MONEY FOLLOWING THE 

1228
00:49:50,800 --> 00:49:52,360
PERSONS PROGRAM RECEIVE THE 

1229
00:49:52,360 --> 00:49:54,760
ABILITY TO BE EXPANDED.

1230
00:49:54,760 --> 00:49:58,000
ON MARCH 31, JUST RECENTLY, CMS 

1231
00:49:58,000 --> 00:50:01,360
ANNOUNCE THE AVAILABLE OF $110 

1232
00:50:01,360 --> 00:50:02,880
MILLION TO EXPAND ACCESS TO HOME

1233
00:50:02,880 --> 00:50:05,280
AND COMMUNITY-BASED SERVICES 

1234
00:50:05,280 --> 00:50:09,160
THROUGH THE MONEY FOLLOWS THE 

1235
00:50:09,160 --> 00:50:10,320
PERSON PROGRAM AND IT HELPS 

1236
00:50:10,320 --> 00:50:10,840
PEOPLE TRANSITION OUT OF 

1237
00:50:10,840 --> 00:50:11,520
INSTITUTIONS BACK TO THE 

1238
00:50:11,520 --> 00:50:15,160
COMMUNITY.

1239
00:50:15,160 --> 00:50:18,200
CMS ALSO ANNOUNCED THE AGENCY IS

1240
00:50:18,200 --> 00:50:18,880
INCREASING THE REIMBURSEMENT 

1241
00:50:18,880 --> 00:50:21,160
RATE FOR THE MONEY FOLLOWS THE 

1242
00:50:21,160 --> 00:50:22,880
PERSON SUPPLEMENTAL SERVICE.

1243
00:50:22,880 --> 00:50:25,160
THEY'LL NOW BE 100% FUNDED WITH 

1244
00:50:25,160 --> 00:50:26,720
NO STATE SHARE.

1245
00:50:26,720 --> 00:50:28,480
FURTHER, CMS IS EXPANDING THE 

1246
00:50:28,480 --> 00:50:30,360
DEFINITION OF SUPPLEMENTAL 

1247
00:50:30,360 --> 00:50:31,400
SERVICES TO INCLUDE ADDITIONAL 

1248
00:50:31,400 --> 00:50:34,000
SERVICES THAT CAN SUPPORT AN 

1249
00:50:34,000 --> 00:50:36,560
INDIVIDUAL'S TRANSITIONS FROM AN

1250
00:50:36,560 --> 00:50:38,240
INSTITUTION TO THE COMMUNITY 

1251
00:50:38,240 --> 00:50:41,320
INCLUDING SHORT-TERM HOUSING AND

1252
00:50:41,320 --> 00:50:42,360
FOOD ASSISTANCE.

1253
00:50:42,360 --> 00:50:43,400
THIS WILL HELP FURTHER ADDRESS 

1254
00:50:43,400 --> 00:50:44,640
BARRIERS TO COMMUNITY LIVING FOR

1255
00:50:44,640 --> 00:50:45,160
PEOPLE ELIGIBLE FOR THESE 

1256
00:50:45,160 --> 00:50:48,760
PROGRAMS.

1257
00:50:48,760 --> 00:50:50,080
AS WELL AS INCREASE COMMUNITY 

1258
00:50:50,080 --> 00:50:52,160
TRANSITION RATES AND THE 

1259
00:50:52,160 --> 00:50:54,680
EFFECTIVENESS OF THE MONEY 

1260
00:50:54,680 --> 00:50:56,680
FOLLOWS PERSON DEMONSTRATION.

1261
00:50:56,680 --> 00:50:58,800
AN OPEN DOOR FORUM WILL OCCUR 

1262
00:50:58,800 --> 00:51:01,760
APRIL 19 TO PROVIDE MORE 

1263
00:51:01,760 --> 00:51:02,640
INFORMATION ON THE INITIATIVES 

1264
00:51:02,640 --> 00:51:03,720
AND WE HAVE INFORMATION ON HOW 

1265
00:51:03,720 --> 00:51:09,880
YOU CAN LISTEN TO THAT CALL ON 

1266
00:51:09,880 --> 00:51:11,680
THE HOUSING AND RESOURCE CENTER 

1267
00:51:11,680 --> 00:51:14,360
WEBSITE AND SUGGEST YOU VISIT 

1268
00:51:14,360 --> 00:51:16,560
THE WHAT'S NEW SECTION TO CALL 

1269
00:51:16,560 --> 00:51:18,320
AND OBTAIN INFORMATION TO LISTEN

1270
00:51:18,320 --> 00:51:19,520
TO THE OPEN DOOR FORUM.

1271
00:51:19,520 --> 00:51:22,760
IN ADDITION, THE OLDER AMERICANS

1272
00:51:22,760 --> 00:51:25,160
ACT ALSO RECEIVED AN ADDITIONAL 

1273
00:51:25,160 --> 00:51:27,160
$400 MILLION TO INCREASE THE 

1274
00:51:27,160 --> 00:51:29,320
AVAILABILITY OR ACCESS TO HOME 

1275
00:51:29,320 --> 00:51:32,960
AND COMMUNITY-BASED SERVICES AND

1276
00:51:32,960 --> 00:51:34,240
ASSISTIVE TECHNOLOGY.

1277
00:51:34,240 --> 00:51:39,560
IN JULY OF 2021, HHS AND HUD 

1278
00:51:39,560 --> 00:51:41,600
FORMED A PARTNERSHIP TO RALLY 

1279
00:51:41,600 --> 00:51:43,360
TOGETHER ON HOW WE COLLABORATE 

1280
00:51:43,360 --> 00:51:47,320
AND COORDINATE THE 

1281
00:51:47,320 --> 00:51:48,560
IMPLEMENTATION OF THE AMERICAN 

1282
00:51:48,560 --> 00:51:50,080
RESCUE PLAN INVESTMENTS AND 

1283
00:51:50,080 --> 00:51:54,560
FURTHER STRENGTHEN OUR 

1284
00:51:54,560 --> 00:51:55,160
PARTNERSHIP ON SUPPORTING 

1285
00:51:55,160 --> 00:51:56,600
STATES, COMMUNITIES, 

1286
00:51:56,600 --> 00:51:58,320
ORGANIZATIONS IN HELPING PEOPLE 

1287
00:51:58,320 --> 00:51:59,160
OBTAIN AND MAINTAIN STABLE 

1288
00:51:59,160 --> 00:52:03,200
HOUSING AND THE SERVICES THEY 

1289
00:52:03,200 --> 00:52:04,920
NEED TO ENGAGE IN THE COMMUNITY.

1290
00:52:04,920 --> 00:52:09,200
SO WITH THAT, ONE OF OUR 

1291
00:52:09,200 --> 00:52:11,520
COLLABORATIVE EFFORTS IS THE 

1292
00:52:11,520 --> 00:52:16,480
HOUSING RESOURCE CENTER WE 

1293
00:52:16,480 --> 00:52:18,760
ANNOUNCE THE HOUSING AND 

1294
00:52:18,760 --> 00:52:20,880
RESOURCES CENTER IN DECEMBER AND

1295
00:52:20,880 --> 00:52:22,760
THE AGENCIES INCLUDE THE 

1296
00:52:22,760 --> 00:52:24,560
ADMINISTRATION FOR COMMUNITY 

1297
00:52:24,560 --> 00:52:27,160
LIVING AND THE ASSISTANT 

1298
00:52:27,160 --> 00:52:28,160
SECRETARY FOR PLANNING AND 

1299
00:52:28,160 --> 00:52:30,360
EVALUATION AND THE CENTER FOR 

1300
00:52:30,360 --> 00:52:33,280
MEDICARE AND MEDICAID SERVICES, 

1301
00:52:33,280 --> 00:52:35,040
THE SUBSTANCE ABUSE AND MENTAL 

1302
00:52:35,040 --> 00:52:36,640
HEALTH SERVICES ADMINISTRATION 

1303
00:52:36,640 --> 00:52:37,640
AND THE U.S. DEPARTMENT OF 

1304
00:52:37,640 --> 00:52:39,240
HOUSING AND URBAN DEVELOPMENT.

1305
00:52:39,240 --> 00:52:42,360
WE ANNOUNCED THE RESOURCE CENTER

1306
00:52:42,360 --> 00:52:44,040
AND IT'S A FEDERAL APPROACH TO 

1307
00:52:44,040 --> 00:52:46,360
PROVIDING RESEARCH, GUIDANCE AND

1308
00:52:46,360 --> 00:52:47,560
TECHNICAL ASSISTANCE AND 

1309
00:52:47,560 --> 00:52:50,920
CREATING PARTNERSHIPS AMONG THE 

1310
00:52:50,920 --> 00:52:51,560
STATE MEDICAID DISABILITY AND 

1311
00:52:51,560 --> 00:52:53,920
AGING AGENCIES, THE STATE AND 

1312
00:52:53,920 --> 00:52:55,520
LOCAL PUBLIC HOUSING AGENCIES 

1313
00:52:55,520 --> 00:52:56,920
AND AUTHORITIES, DISABILITY AND 

1314
00:52:56,920 --> 00:53:00,280
AGING NETWORKS AND PROVIDERS, 

1315
00:53:00,280 --> 00:53:01,520
BEHAVIORAL HEALTH PROVIDERS, 

1316
00:53:01,520 --> 00:53:02,960
HOUSING AND HOMELESS PROVIDERS.

1317
00:53:02,960 --> 00:53:07,560
ONE OF OUR FIRST PRODUCTS IS THE

1318
00:53:07,560 --> 00:53:09,840
HSRC OR HOUSING AND SERVICES 

1319
00:53:09,840 --> 00:53:11,760
RESOURCE CENTER WEBSITE.

1320
00:53:11,760 --> 00:53:19,400
THAT IS AT ACL.gov

1321
00:53:19,400 --> 00:53:21,600
ACL.gov/HOUSINGANDSERVICES ALL 

1322
00:53:21,600 --> 00:53:23,440
SPELLED OUT.

1323
00:53:23,440 --> 00:53:24,640
IT'S A SINGLE LOCATION WITH LINK

1324
00:53:24,640 --> 00:53:32,560
RELATED TO HOUSING AND SERVICES.

1325
00:53:32,560 --> 00:53:33,920
AND THE RESOURCE CENTER WILL 

1326
00:53:33,920 --> 00:53:35,520
COORDINATE TECHNICAL ASSISTANCE,

1327
00:53:35,520 --> 00:53:37,960
FACILITATE PARTNERSHIPS, 

1328
00:53:37,960 --> 00:53:41,600
RECOGNIZE AND SHARE NOVE  

1329
00:53:41,600 --> 00:53:42,640
INNOVATIONS AND LEVERAGE AND 

1330
00:53:42,640 --> 00:53:43,400
ALIGN RESOURCE.

1331
00:53:43,400 --> 00:53:45,240
WE KNOW IT WILL TAKE ALL OF US 

1332
00:53:45,240 --> 00:53:46,480
WORKING TOGETHER IN ORDER FOR 

1333
00:53:46,480 --> 00:53:48,960
PEOPLE TO OBTAIN AND MAINTAIN 

1334
00:53:48,960 --> 00:53:51,520
STABLE HOUSING AND SERVICES THEY

1335
00:53:51,520 --> 00:53:54,960
NEED.

1336
00:53:54,960 --> 00:53:56,000
AND THANK YOU FOR THE RESEARCH 

1337
00:53:56,000 --> 00:53:57,720
AND WORK YOU DO EACH DAY TO 

1338
00:53:57,720 --> 00:53:59,160
SERVE PEOPLE WITH DISABILITIES, 

1339
00:53:59,160 --> 00:54:04,440
THEIR FAMILIES, OLDER ADULTS AND

1340
00:54:04,440 --> 00:54:05,600
CAREGIVERS.

1341
00:54:05,600 --> 00:54:09,160
VISIT THE HSRC WEB PAGE CENTER 

1342
00:54:09,160 --> 00:54:11,560
TO REVIEW RECORDED WEBINARS AND 

1343
00:54:11,560 --> 00:54:13,360
REMEMBER THE OPEN DOOR FORUM 

1344
00:54:13,360 --> 00:54:15,040
COMING UP APRIL 19.

1345
00:54:15,040 --> 00:54:24,200
E-MAIL US AT HSRC@HHS.gov TO 

1346
00:54:24,200 --> 00:54:27,520
TELL US ABOUT THE HOUSING SECTOR

1347
00:54:27,520 --> 00:54:30,880
AND HOW YOU'RE HELPING PEOPLE 

1348
00:54:30,880 --> 00:54:33,400
STAY STABLY HOUSED AND OBTAINING

1349
00:54:33,400 --> 00:54:34,520
ACCESSIBLE, AFFORDABLE HOUSING 

1350
00:54:34,520 --> 00:54:35,160
AND SERVICES.

1351
00:54:35,160 --> 00:54:37,920
WE WANT TO KNOW WHAT 

1352
00:54:37,920 --> 00:54:39,280
PARTNERSHIPS ARE OUT THERE AND 

1353
00:54:39,280 --> 00:54:40,960
WHAT'S WORKING AND WHAT WE MIGHT

1354
00:54:40,960 --> 00:54:43,560
BE ABLE TO HOLD UP FOR 

1355
00:54:43,560 --> 00:54:47,240
APPLICATION ACROSS THE COUNTRY.

1356
00:54:47,240 --> 00:54:49,240
IF YOU'D LIKE TO ASK THE 

1357
00:54:49,240 --> 00:54:53,240
QUESTION E-MAIL US AT 

1358
00:54:53,240 --> 00:54:55,560
HSRC@HHS.gov OR IF YOU'D LIKE TO

1359
00:54:55,560 --> 00:54:57,800
BE ADDED TO OUR E-MAIL LIST 

1360
00:54:57,800 --> 00:54:58,960
WHERE YOU'LL RECEIVE UPDATES AS 

1361
00:54:58,960 --> 00:55:02,440
WE UPDATE THE WEBSITE, PLEASE 

1362
00:55:02,440 --> 00:55:08,400
E-MAIL US AGAIN AT 

1363
00:55:08,400 --> 00:55:08,960
HSRC@ACL@HHS.gov.

1364
00:55:08,960 --> 00:55:09,920
THANK YOU FOR ALLOWING US TO 

1365
00:55:09,920 --> 00:55:11,560
SHARE THE INFORMATION ABOUT THE 

1366
00:55:11,560 --> 00:55:13,040
HOUSING AND SERVICES RESOURCE 

1367
00:55:13,040 --> 00:55:13,400
CENTER.

1368
00:55:13,400 --> 00:55:14,360
THIS CONCLUDES MY PRESENTATION.

1369
00:55:14,360 --> 00:55:20,760
>> THANK YOU, LORI FOR THAT 

1370
00:55:20,760 --> 00:55:25,720
INFORMATIVE PRESENTATION.

1371
00:55:25,720 --> 00:55:31,520
I'LL INTRODUCE SUSAN DANIELS FOR

1372
00:55:31,520 --> 00:55:49,000
THE VIDEO.

1373
00:55:49,000 --> 00:55:58,120
>> WE CAN HEAR YOU JUST FINE.

1374
00:55:58,120 --> 00:55:59,160
THANK YOU.

1375
00:55:59,160 --> 00:56:00,800
SO WE'RE GOING TO HEAR A LITTLE 

1376
00:56:00,800 --> 00:56:03,120
BIT ABOUT AUTISM AND 

1377
00:56:03,120 --> 00:56:03,720
HOMELESSNESS AND ADDITIONAL 

1378
00:56:03,720 --> 00:56:06,160
INFORMATION IN EXPERIENCES FROM 

1379
00:56:06,160 --> 00:56:07,080
THE BERGEN COUNTY NEW JERSEY 

1380
00:56:07,080 --> 00:56:14,840
HEALTH AND HUMAN SERVICES 

1381
00:56:14,840 --> 00:56:15,080
CENTER.

1382
00:56:15,080 --> 00:56:17,560
WE'LL BE HEARING FROM JULIA 

1383
00:56:17,560 --> 00:56:18,880
ORLANDO FROM THE BERGEN COUNTY 

1384
00:56:18,880 --> 00:56:20,480
HEALTH AND HUMAN SERVICES CENTER

1385
00:56:20,480 --> 00:56:24,560
AND THE MISSION OF THIS CENTER 

1386
00:56:24,560 --> 00:56:27,080
IS TO END HOMELESSNESS IN BERGEN

1387
00:56:27,080 --> 00:56:28,760
COUNTY AND SHE PROVIDED 

1388
00:56:28,760 --> 00:56:30,640
LEADERSHIP FOR THE COMMUNITY 

1389
00:56:30,640 --> 00:56:32,560
WIDE EFFORT TO END VETERAN 

1390
00:56:32,560 --> 00:56:34,280
HOMELESSNESS IN BERGEN COUNTY 

1391
00:56:34,280 --> 00:56:35,560
AND PROVIDED LEADERSHIP TO LEAD 

1392
00:56:35,560 --> 00:56:37,960
THEM TO BE THE FIRST IN THE 

1393
00:56:37,960 --> 00:56:42,120
NATION IN 2017 TO SUCCESSFULLY 

1394
00:56:42,120 --> 00:56:42,840
REACH FUNCTIONAL ZERO FOR 

1395
00:56:42,840 --> 00:56:44,480
HOMELESSNESS IN BERGEN COUNTY 

1396
00:56:44,480 --> 00:56:46,760
AND THE OTHER COMMUNITY TO DATE 

1397
00:56:46,760 --> 00:56:48,440
TO SUSTAIN THAT ZERO FOR MORE 

1398
00:56:48,440 --> 00:56:49,000
THAN ONE YEAR.

1399
00:56:49,000 --> 00:56:51,120
I'VE THAT'D PLEASURE OF TALKING 

1400
00:56:51,120 --> 00:56:55,440
TO MS. ORLANDO SINCE BEFORE THE 

1401
00:56:55,440 --> 00:56:58,000
PANDEMIC ABOUT THE SITUATION SHE

1402
00:56:58,000 --> 00:56:59,560
REACHED OUT TO TALK ABOUT THE 

1403
00:56:59,560 --> 00:57:03,560
SITUATION FACING IN HER HOMELESS

1404
00:57:03,560 --> 00:57:05,360
PROGRAM WITH RECEIVING PEOPLE ON

1405
00:57:05,360 --> 00:57:06,600
THE AUTISM SPECTRUM INTO THE 

1406
00:57:06,600 --> 00:57:09,000
PROGRAM AND WANTING TO HEAR FROM

1407
00:57:09,000 --> 00:57:10,840
THE IACC HOW THEY MAY BE ABLE TO

1408
00:57:10,840 --> 00:57:11,400
BE HELPFUL.

1409
00:57:11,400 --> 00:57:14,400
I'LL SHARE A VIDEO WITH YOU THAT

1410
00:57:14,400 --> 00:57:19,560
SHE RECORDED FOR US AND THEN 

1411
00:57:19,560 --> 00:57:20,120
PROVIDE SOME COMMENTS AFTER 

1412
00:57:20,120 --> 00:57:21,160
THAT.

1413
00:57:21,160 --> 00:57:24,440
>> HELLO, MY NAME IS JULIE 

1414
00:57:24,440 --> 00:57:25,760
ORLANDO THE DIRECTOR OF THE 

1415
00:57:25,760 --> 00:57:27,160
BERGEN COUNTY HEALTH AND HUMAN 

1416
00:57:27,160 --> 00:57:29,400
SERVICES CENTER LOCATED IN 

1417
00:57:29,400 --> 00:57:30,640
HACKENSACK, NEW JERSEY.

1418
00:57:30,640 --> 00:57:35,320
WE PROVIDE SHELTER SERVICES AND 

1419
00:57:35,320 --> 00:57:36,960
SOCIAL SERVICES FOR PERSONS 

1420
00:57:36,960 --> 00:57:38,800
EXPERIENCING HOMELESSNESS WHO 

1421
00:57:38,800 --> 00:57:41,040
ARE AGE 18 YEARS OR OLDER WITHIN

1422
00:57:41,040 --> 00:57:41,400
OUR COMMUNITY.

1423
00:57:41,400 --> 00:57:45,160
I WANTED TO SHARE WITH YOU TODAY

1424
00:57:45,160 --> 00:57:47,560
OUR EXPERIENCE WORKING WITH 

1425
00:57:47,560 --> 00:57:50,360
PEOPLE WITH AUTISM AND 

1426
00:57:50,360 --> 00:57:51,320
DEVELOPMENTAL DISABILITIES 

1427
00:57:51,320 --> 00:57:52,480
WITHIN OUR HOMELESS POPULATION.

1428
00:57:52,480 --> 00:57:55,520
IF IN ADULT WITH A DEVELOPMENTAL

1429
00:57:55,520 --> 00:57:57,720
DISABILITY IS NOT CONNECTED AS A

1430
00:57:57,720 --> 00:57:59,200
RESOURCE AS A CHILD OR BEFORE 

1431
00:57:59,200 --> 00:58:00,400
THE AGE OF 18 IT'S DIFFICULT TO 

1432
00:58:00,400 --> 00:58:03,280
GET THEM LINKED TO SERVICES ONCE

1433
00:58:03,280 --> 00:58:05,760
THEY ARE IN ADULT.

1434
00:58:05,760 --> 00:58:08,560
WE'VE HAD SEVERAL INDIVIDUALS 

1435
00:58:08,560 --> 00:58:10,920
OVER THE YEARS WITH DUAL 

1436
00:58:10,920 --> 00:58:14,680
DIAGNOSIS OR CO-OCCURRING 

1437
00:58:14,680 --> 00:58:16,440
DISORDERS WHICH INCLUDE CHRONIC 

1438
00:58:16,440 --> 00:58:17,480
SEVERE MENTAL HEALTH DIAGNOSIS 

1439
00:58:17,480 --> 00:58:19,560
AND ALSO ON THE SPECTRUM.

1440
00:58:19,560 --> 00:58:20,560
THE PROBLEM FOR THOSE 

1441
00:58:20,560 --> 00:58:21,960
INDIVIDUALS IS THEY'RE OFTEN 

1442
00:58:21,960 --> 00:58:27,080
TARGETED AND BECOME THE VICTIMS 

1443
00:58:29,400 --> 00:58:30,880
OF THEFT AND ABUSE AND PICKED ON

1444
00:58:30,880 --> 00:58:33,040
BY OTHER INDIVIDUALS STAYING IN 

1445
00:58:33,040 --> 00:58:33,280
SHELTER.

1446
00:58:33,280 --> 00:58:35,560
THEY ALSO STRUGGLE AT TIMES WITH

1447
00:58:35,560 --> 00:58:37,160
IMPULSE CONTROL WHICH MAKES IT 

1448
00:58:37,160 --> 00:58:38,880
DIFFICULT FOR THE STAFF TO 

1449
00:58:38,880 --> 00:58:39,760
MANAGE THEM HERE SAFELY IN THE 

1450
00:58:39,760 --> 00:58:43,920
ENVIRONMENT.

1451
00:58:43,920 --> 00:58:46,480
AND WE HAD SINGLE PARENTS WITH 

1452
00:58:46,480 --> 00:58:48,600
AN ADULT DISABLED CHILD AND THIS

1453
00:58:48,600 --> 00:58:49,920
IS A BARRIER AS THE PARENT NEEDS

1454
00:58:49,920 --> 00:58:51,200
A SETTING WHERE THEY CAN CARE 

1455
00:58:51,200 --> 00:58:52,680
FOR THE ADULT CHILD.

1456
00:58:52,680 --> 00:58:55,560
AT TIMES THERE HAVE ALSO BEEN 

1457
00:58:55,560 --> 00:58:57,560
PHYSICAL LIMITATIONS THAT 

1458
00:58:57,560 --> 00:59:00,560
REQUIRE MORE THAN ASSISTIVE 

1459
00:59:00,560 --> 00:59:02,600
DEVICES AND UNFORTUNATELY WE ARE

1460
00:59:02,600 --> 00:59:04,120
NOT A SETTING FOR THAT AND 

1461
00:59:04,120 --> 00:59:06,960
MANAGE THOSE INDIVIDUALS THERE 

1462
00:59:06,960 --> 00:59:08,600
AND UNFORTUNATELY THERE REALLY 

1463
00:59:08,600 --> 00:59:11,160
ISN'T ANYWHERE TO SEND A FAMILY 

1464
00:59:11,160 --> 00:59:13,760
UNIT LIKE THAT FOR SHELTER 

1465
00:59:13,760 --> 00:59:14,320
WITHIN OUR COMMUNITY.

1466
00:59:14,320 --> 00:59:15,280
THERE ARE INCREDIBLE BARRIERS 

1467
00:59:15,280 --> 00:59:19,560
FOR THAT WHEN WE ENCOUNTER 

1468
00:59:19,560 --> 00:59:21,280
SOMEONE NON-VERBAL IT CAN BE 

1469
00:59:21,280 --> 00:59:22,400
VERY DIFFICULT FOR THEM TO 

1470
00:59:22,400 --> 00:59:24,920
NAVIGATE THE SHELTER IN TERM OF 

1471
00:59:24,920 --> 00:59:28,640
COMMUNICATING NEEDS AND 

1472
00:59:28,640 --> 00:59:29,280
FOLLOWING DIRECTIONS.

1473
00:59:29,280 --> 00:59:34,960
THIS IS DUE TO IT BEING A 

1474
00:59:34,960 --> 00:59:35,680
DEPENDENT ENVIRONMENT IN THE 

1475
00:59:35,680 --> 00:59:38,240
SHELTER THOUGH WE HAVE MANY 

1476
00:59:38,240 --> 00:59:39,400
PEOPLE WITH VARYING CONDITIONS 

1477
00:59:39,400 --> 00:59:43,560
THEY NEED TO BE ABLE TO MANAGE 

1478
00:59:43,560 --> 00:59:47,560
THEMSELVES INDEPENDENTLY AND 

1479
00:59:47,560 --> 00:59:49,320
CAN'T RELY ON SUPPORT FROM 

1480
00:59:49,320 --> 00:59:49,760
ON-HAND STAFF.

1481
00:59:49,760 --> 00:59:51,840
WE DON'T HAVE SPECIALIZED CARE 

1482
00:59:51,840 --> 00:59:53,960
FOR PEOPLE WE'RE ABLE TO DO 

1483
00:59:53,960 --> 00:59:54,240
THAT.

1484
00:59:54,240 --> 00:59:56,160
WE ALSO HAD INSTANCE WHERE'S 

1485
00:59:56,160 --> 00:59:58,480
PARENTS HAVE HAD THEIR OWN 

1486
00:59:58,480 --> 00:59:59,000
DISABILITIES AND HEALTH 

1487
00:59:59,000 --> 01:00:02,880
CONDITIONS SO THEY ARE NO LONGER

1488
01:00:02,880 --> 01:00:05,800
ABLE TO CARE FOR THE ADULT 

1489
01:00:05,800 --> 01:00:07,120
DISABLED CHILD.

1490
01:00:07,120 --> 01:00:09,240
AT TIMES BASED ON THE PARENT'S 

1491
01:00:09,240 --> 01:00:10,760
DISABILITY THEY DON'T CONNECT 

1492
01:00:10,760 --> 01:00:11,640
THE CHILD TO APPROPRIATE 

1493
01:00:11,640 --> 01:00:17,200
RESOURCES INCLUDING THEIR 

1494
01:00:17,200 --> 01:00:23,920
BENEFITS, INCLUDING SERVICES AT 

1495
01:00:23,920 --> 01:00:25,680
DDG IN BERGEN COUNTY AND WHEN 

1496
01:00:25,680 --> 01:00:27,200
THEY'RE NOT LINKED SO RESOURCES 

1497
01:00:27,200 --> 01:00:29,160
EARLY ON IT RESULTS IN NO PLAN 

1498
01:00:29,160 --> 01:00:31,480
FOR THEM ONCE SOMETHING HAPPENS 

1499
01:00:31,480 --> 01:00:35,880
TO THE PARENTS IF THE FAMILY 

1500
01:00:35,880 --> 01:00:38,080
BECOMES HOMELESS AND THERE'S NO 

1501
01:00:38,080 --> 01:00:39,560
BARRIER TO SERVE THE POPULATION 

1502
01:00:39,560 --> 01:00:45,160
WHEN THEY'RE HOMELESS.

1503
01:00:45,160 --> 01:00:47,360
FAMILY SHELTERS THAT TIME MINOR 

1504
01:00:47,360 --> 01:00:55,920
CHILDREN ARE EQUALLY 

1505
01:00:55,920 --> 01:00:57,600
ILL-EQUIPPED TO CARE FOR WHO IS 

1506
01:00:57,600 --> 01:01:00,360
BROUGHT TO THE FACILITIES AND WE

1507
01:01:00,360 --> 01:01:03,520
NEED TO RECOGNIZE THE SIGNS 

1508
01:01:03,520 --> 01:01:06,160
SOMEONE MAY HAVE A DEVELOPMENTAL

1509
01:01:06,160 --> 01:01:07,560
DISABILITIES AND HAVE BEST 

1510
01:01:07,560 --> 01:01:09,240
PRACTICES AN RESOURCES TO HELP 

1511
01:01:09,240 --> 01:01:13,760
INDIVIDUALS IN THAT SITUATION 

1512
01:01:13,760 --> 01:01:15,880
AND TO PROVIDE DDD AGENCY 

1513
01:01:15,880 --> 01:01:17,040
CONTACTS IN EACH STATE TO ASSIST

1514
01:01:17,040 --> 01:01:18,240
WITH THESE CASES.

1515
01:01:18,240 --> 01:01:23,960
WE FEEL STRONGLY THAT IF WE CAN 

1516
01:01:23,960 --> 01:01:25,920
BEGIN TO EFFECTIVELY ADDRESS THE

1517
01:01:25,920 --> 01:01:28,360
ISSUE GROWING WITHIN OUR 

1518
01:01:28,360 --> 01:01:31,520
POPULATION ESPECIALLY IN LIGHT 

1519
01:01:31,520 --> 01:01:34,880
OF COVID FAMILY AND INDIVIDUALS 

1520
01:01:34,880 --> 01:01:37,600
BECOMING DISPLACED FROM 

1521
01:01:37,600 --> 01:01:38,800
MORATORIUMS ENDING IF WE CAN 

1522
01:01:38,800 --> 01:01:39,560
HAVE THE RESOURCES AND ATTENTION

1523
01:01:39,560 --> 01:01:41,960
NEEDED WE WOULD BE ABLE TO MORE 

1524
01:01:41,960 --> 01:01:43,560
SUCCESSFULLY SERVE THE 

1525
01:01:43,560 --> 01:01:48,520
INDIVIDUALS TO HELP GET THEM 

1526
01:01:48,520 --> 01:01:54,680
BACK INTO HOUSING SAFELY AND 

1527
01:01:54,680 --> 01:01:56,120
KEEP THEM THERE ABLY TO HAVE A 

1528
01:01:56,120 --> 01:01:57,760
MEANINGFUL AND PRODUCTIVE LIFE.

1529
01:01:57,760 --> 01:01:59,560
THANK YOU FOR LISTENING TO MY 

1530
01:01:59,560 --> 01:02:02,680
REMARKS TODAY.

1531
01:02:02,680 --> 01:02:05,200
>> WE THANK JULIA FOR SHARING 

1532
01:02:05,200 --> 01:02:05,600
REMARKS WITH US.

1533
01:02:05,600 --> 01:02:07,520
IN VIM BASED ON CONVERSATIONS 

1534
01:02:07,520 --> 01:02:12,040
THAT I'VE HAD WITH JULIA AND 

1535
01:02:12,040 --> 01:02:15,240
SHE'S HAD WITH OTHER STAFF 

1536
01:02:15,240 --> 01:02:19,400
BEHIND THE SCENES TO SUMMARIZE 

1537
01:02:19,400 --> 01:02:20,160
THE PROGRAMS DESCRIBED THERE'S 

1538
01:02:20,160 --> 01:02:23,880
YOUTH AND YOUNG ADULTS WITH 

1539
01:02:23,880 --> 01:02:25,600
AUTISM WHOSE FAMILIES ARE UNABLE

1540
01:02:25,600 --> 01:02:28,560
TO CARE FOR THEM AND SOMETIMES 

1541
01:02:28,560 --> 01:02:31,520
THE PARENTS HAVE IDD THEMSELVES 

1542
01:02:31,520 --> 01:02:33,760
OR MENTAL ILLNESS OR OTHER 

1543
01:02:33,760 --> 01:02:35,880
COMPLEX NEEDS AND A POPULATION 

1544
01:02:35,880 --> 01:02:38,760
OF MIDDLE AGE TO OLDER ADULTS 

1545
01:02:38,760 --> 01:02:40,640
WITH AUTISM OR IDD WHO PLAY HAVE

1546
01:02:40,640 --> 01:02:43,560
BEEN LIVING WITH THEIR PARENTS 

1547
01:02:43,560 --> 01:02:44,560
BUT THEN WHOSE PARENTS PASSED 

1548
01:02:44,560 --> 01:02:45,880
AND DID NOT HAVE CARE PLANS IN 

1549
01:02:45,880 --> 01:02:47,040
PLACE FOR THEM.

1550
01:02:47,040 --> 01:02:48,840
SOME OF THE SPECIFIC CHALLENGES 

1551
01:02:48,840 --> 01:02:49,880
SHE NAMED WERE THAT BOTH GROUPS 

1552
01:02:49,880 --> 01:02:53,960
ARE NOT CONNECTED TO DD SERVICES

1553
01:02:53,960 --> 01:02:54,920
EARLIER AND THERE ARE MAJOR 

1554
01:02:54,920 --> 01:02:56,480
BARRIERS IN TRYING TO CONNECT 

1555
01:02:56,480 --> 01:02:58,680
THEM AFTER THE FACT IF THEY WERE

1556
01:02:58,680 --> 01:03:00,960
NOT CONNECTED PRIOR TO ADULTHOOD

1557
01:03:00,960 --> 01:03:02,560
AND SOME OF THE MAJOR CHALLENGES

1558
01:03:02,560 --> 01:03:04,120
SHE'S FOUND IN THE SHELTER 

1559
01:03:04,120 --> 01:03:06,360
ENVIRONMENT INCLUDE SOCIAL AND 

1560
01:03:06,360 --> 01:03:08,240
EMOTIONAL SKILLS, COMMUNICATION 

1561
01:03:08,240 --> 01:03:10,280
CHALLENGES, LACK OF SELF-CARE 

1562
01:03:10,280 --> 01:03:11,360
AND INDEPENDENT SKILLS, HIGH 

1563
01:03:11,360 --> 01:03:14,160
LEVELS OF ANXIETY, CO-OCCURRING 

1564
01:03:14,160 --> 01:03:17,560
CONDITIONS AND VULNERABILITY TO 

1565
01:03:17,560 --> 01:03:18,720
UNSAFE SITUATIONS WITH OTHERS IN

1566
01:03:18,720 --> 01:03:21,040
THE SHELTER POPULATION.

1567
01:03:21,040 --> 01:03:23,520
FINALLY, HER ASKS WERE SOME HELP

1568
01:03:23,520 --> 01:03:25,480
WITH FINDING A WAY TO PROVIDE 

1569
01:03:25,480 --> 01:03:27,200
HOMELESS SHELTER STAFF WITH MORE

1570
01:03:27,200 --> 01:03:29,560
GUIDANCE, TRAINING, TOOL KITS OR

1571
01:03:29,560 --> 01:03:31,080
ROAD MAPS TO HELP IDENTIFY 

1572
01:03:31,080 --> 01:03:33,080
INDIVIDUALS WITH AUTISM OR IDD 

1573
01:03:33,080 --> 01:03:34,440
AND TO UNDERSTAND HOW TO BEST 

1574
01:03:34,440 --> 01:03:35,600
ADDRESS THEIR NEEDS AND CONNECT 

1575
01:03:35,600 --> 01:03:37,560
THEM TO SOCIAL SERVICES AND 

1576
01:03:37,560 --> 01:03:39,320
SUPPORTS THAT COULD MAKE THEM 

1577
01:03:39,320 --> 01:03:41,600
MORE SUCCESSFUL IN ASSISTED 

1578
01:03:41,600 --> 01:03:41,840
HOUSING.

1579
01:03:41,840 --> 01:03:43,360
THANK YOU, JULIA FOR SHARING 

1580
01:03:43,360 --> 01:03:52,520
THAT WITH US TODAY.

1581
01:03:52,520 --> 01:03:54,360
I BELIEVE JOSH IS AWAY AT THIS 

1582
01:03:54,360 --> 01:03:56,080
MOMENT AND WE HAVE TIME FOR 

1583
01:03:56,080 --> 01:03:57,000
DISCUSSION WITH THE COMMITTEE.

1584
01:03:57,000 --> 01:03:58,080
IF ANYONE HAS QUESTIONS, FEEL 

1585
01:03:58,080 --> 01:04:11,160
FREE TO ASK.

1586
01:04:11,160 --> 01:04:13,600
YOU CAN RAISE YOUR HAND IN ZOOM.

1587
01:04:13,600 --> 01:04:19,520
GO AHEAD, JAYLIN.

1588
01:04:19,520 --> 01:04:21,160
>> THANK YOU.

1589
01:04:21,160 --> 01:04:23,040
YOU'RE GETTING INTO ONE OF OUR 

1590
01:04:23,040 --> 01:04:23,960
FAVORITE AREAS RIGHT HERE AND 

1591
01:04:23,960 --> 01:04:26,120
THANK YOU FOR THE PRESENTATIONS 

1592
01:04:26,120 --> 01:04:27,040
MADE TODAY.

1593
01:04:27,040 --> 01:04:31,320
SOME OF THE OBSERVATIONS THOUGH 

1594
01:04:31,320 --> 01:04:35,120
SOMEONE NEEDS TO BECOME HOMELESS

1595
01:04:35,120 --> 01:04:37,040
OR INSTITUTIONALIZED TO QUALIFY 

1596
01:04:37,040 --> 01:04:38,400
FOR THE 811 HOUSING ASSISTANCE.

1597
01:04:38,400 --> 01:04:39,720
THIS IS TRAUMATIC.

1598
01:04:39,720 --> 01:04:42,760
IS HUD LOOKING AT HOUSING 

1599
01:04:42,760 --> 01:04:43,560
NAVIGATION SERVICES PAIRED WITH 

1600
01:04:43,560 --> 01:04:45,320
HOUSING ASSISTANCE TO HELP 

1601
01:04:45,320 --> 01:04:48,440
TRANSITION PEOPLE FROM ELDERLY 

1602
01:04:48,440 --> 01:04:50,200
PARENTS' HOMES SO THEY DO NOT 

1603
01:04:50,200 --> 01:04:54,680
FIRST HAVE TO BECOME HOMELESS?

1604
01:04:54,680 --> 01:04:55,560
THAT'S COMING FROM OUR HOUSING 

1605
01:04:55,560 --> 01:04:57,440
DIRECTOR ASKING THAT QUESTION 

1606
01:04:57,440 --> 01:05:01,800
THROUGH ME.

1607
01:05:01,800 --> 01:05:02,880
THERE ARE SO MANY THINGS ABOUT 

1608
01:05:02,880 --> 01:05:03,560
HOUSING AND SOME OF THE PEOPLE 

1609
01:05:03,560 --> 01:05:06,320
THAT WE'RE WORKING WITH THAT ARE

1610
01:05:06,320 --> 01:05:09,280
WORKING WITH HOMELESSNESS ARE 

1611
01:05:09,280 --> 01:05:12,080
STATING THAT IT'S EASILY 20% OF 

1612
01:05:12,080 --> 01:05:13,360
THE HOMELESS POPULATION THAT 

1613
01:05:13,360 --> 01:05:15,600
HAPPENS TO BE INDIVIDUALS ON THE

1614
01:05:15,600 --> 01:05:17,760
SPECTRUM.

1615
01:05:17,760 --> 01:05:18,960
FROM WHAT THEY CAN SAYS FROM THE

1616
01:05:18,960 --> 01:05:21,000
TOOLS THEY HAVE AT HAND WHICH IS

1617
01:05:21,000 --> 01:05:22,400
VERY CONCERNING AND WE DO NEED 

1618
01:05:22,400 --> 01:05:24,320
TO WORK WITH THOSE THAT DON'T 

1619
01:05:24,320 --> 01:05:28,560
HAVE HOMES BUT IN A WAY IT SEEMS

1620
01:05:28,560 --> 01:05:31,520
LIKE WE ARE HAVING THE AMBULANCE

1621
01:05:31,520 --> 01:05:33,560
IN THE VALLEY RATHER THAN 

1622
01:05:33,560 --> 01:05:37,160
PUTTING A SAFEGUARD RAIL ABOVE 

1623
01:05:37,160 --> 01:05:39,560
THE CLIFF SO PEOPLE DON'T HAVE 

1624
01:05:39,560 --> 01:05:41,600
TO EXPERIENCE HOMELESSNESS 

1625
01:05:41,600 --> 01:05:43,600
BEFORE THEY'RE ABLE TO 

1626
01:05:43,600 --> 01:05:44,520
TRANSITION INTO A HOME.

1627
01:05:44,520 --> 01:05:54,680
COMMENTS.

1628
01:05:54,680 --> 01:05:56,320
>> I'M HAPPY TO ANSWER THAT AND 

1629
01:05:56,320 --> 01:06:01,280
IT'S IMPORTANT TO CLARIFY THE 

1630
01:06:01,280 --> 01:06:02,280
PROGRAM'S TARGET NOT ONLY 

1631
01:06:02,280 --> 01:06:03,560
HOMELESSNESS AND LIVING IN AN 

1632
01:06:03,560 --> 01:06:05,840
INSTITUTION BUT INDIVIDUALS AT 

1633
01:06:05,840 --> 01:06:07,840
RISK OF BECOMING HOMELESS HAVE 

1634
01:06:07,840 --> 01:06:13,680
SOME FORM OF HOUSING INSECURITY 

1635
01:06:13,680 --> 01:06:20,000
OR ARE AT RISK OF MOVING INTO AN

1636
01:06:20,000 --> 01:06:21,600
INSTITUTION WHEN THEY ARE 

1637
01:06:21,600 --> 01:06:23,480
LEAVING THEIR PARENTS' HOUSE AND

1638
01:06:23,480 --> 01:06:24,440
NEED SERVICES AND SUPPORT TO 

1639
01:06:24,440 --> 01:06:26,080
LIVE IN THE COMMUNITY.

1640
01:06:26,080 --> 01:06:29,320
THERE'S MANY CASES LIKE THAT.

1641
01:06:29,320 --> 01:06:34,280
I WANTED TO CLARIFY THAT THE 

1642
01:06:34,280 --> 01:06:35,520
PROGRAM TRIES TO TARGET 

1643
01:06:35,520 --> 01:06:38,560
POPULATIONS NOT ONLY THE ONES 

1644
01:06:38,560 --> 01:06:41,280
THAT ARE READY IN THIS SEVERE 

1645
01:06:41,280 --> 01:06:43,280
HOUSING INSECURITY SITUATIONS 

1646
01:06:43,280 --> 01:06:48,120
BUT ALSO INDIVIDUALS THAT COULD 

1647
01:06:48,120 --> 01:06:51,320
POTENTIALLY BECOME VULNERABLE TO

1648
01:06:51,320 --> 01:06:59,560
THEM.

1649
01:06:59,560 --> 01:07:01,680
AND WE DON'T KNOW -- RERECOGNIZE

1650
01:07:01,680 --> 01:07:05,400
THAT WE NEED MORE RESEARCH TO 

1651
01:07:05,400 --> 01:07:06,400
TRY TO UNDERSTAND THE DIFFERENT 

1652
01:07:06,400 --> 01:07:07,960
NEEDS PEOPLE WITH DISABILITIES 

1653
01:07:07,960 --> 01:07:15,280
HAVE AMONG PEOPLE EXPERIENCING 

1654
01:07:15,280 --> 01:07:17,160
HOMELESSNESS AND WE'RE LEARNING 

1655
01:07:17,160 --> 01:07:18,520
MORE ABOUT IT AND DOING MORE 

1656
01:07:18,520 --> 01:07:19,040
RESEARCH AROUND THAT.

1657
01:07:19,040 --> 01:07:19,960
>> EXCELLENT.

1658
01:07:19,960 --> 01:07:22,320
I'D LIKE TO FOLLOW UP WITH A 

1659
01:07:22,320 --> 01:07:22,960
COMMENT TOO.

1660
01:07:22,960 --> 01:07:27,120
SOME OF THE SITUATIONS ABOUT 

1661
01:07:27,120 --> 01:07:28,760
HOUSING FOR INDIVIDUALS IMPACTS 

1662
01:07:28,760 --> 01:07:30,720
THE INDIVIDUAL BUT ALSO THE 

1663
01:07:30,720 --> 01:07:31,920
FAMILIES BECAUSE MOTHER AND 

1664
01:07:31,920 --> 01:07:33,800
FATHER ARE GETTING OLDER, THEY 

1665
01:07:33,800 --> 01:07:36,960
ARE NOT ABLE TO TAKE CARE OF 

1666
01:07:36,960 --> 01:07:38,200
SITUATIONS.

1667
01:07:38,200 --> 01:07:38,880
THEY MAY BE DEALING WITH SERIOUS

1668
01:07:38,880 --> 01:07:42,360
ILLNESSES OF THEIR OWN.

1669
01:07:42,360 --> 01:07:43,600
THEY'RE ABLE TO PERHAPS WORK 

1670
01:07:43,600 --> 01:07:47,520
WITH HELPING THEIR ADULT CHILD 

1671
01:07:47,520 --> 01:07:49,000
AND SECURING THE APPROPRIATE 

1672
01:07:49,000 --> 01:07:52,080
HOUSING BUT IT IS MADE VERY 

1673
01:07:52,080 --> 01:07:53,760
DIFFICULT OR IT IS MADE A 

1674
01:07:53,760 --> 01:07:55,720
TREMENDOUS BURDEN THEY DON'T 

1675
01:07:55,720 --> 01:08:01,240
ALWAYS HAVE HELP WITH.

1676
01:08:01,240 --> 01:08:03,320
AND PARENTS CAN LEAVE THE HOUSE 

1677
01:08:03,320 --> 01:08:05,760
PERHAPS BUT DON'T ENSURE THERE'S

1678
01:08:05,760 --> 01:08:07,480
ENOUGH MONEY TO TAKE CARE TAXES 

1679
01:08:07,480 --> 01:08:09,840
AND MAINTENANCE AND THOSE TYPES 

1680
01:08:09,840 --> 01:08:11,560
OF THINGS WHICH ALSO CAUSE 

1681
01:08:11,560 --> 01:08:12,000
HOMELESSNESS.

1682
01:08:12,000 --> 01:08:18,440
SO THERE'S A NUMBER OF WAYS 

1683
01:08:18,440 --> 01:08:23,560
HOMELESSNESS CAN COME ABOUT 

1684
01:08:23,560 --> 01:08:27,240
THERE'S BOUNDARIES HAVE OPTIONS 

1685
01:08:27,240 --> 01:08:32,840
TO BE ABLE TO FIND APPROPRIATE 

1686
01:08:32,840 --> 01:08:45,320
HOUSING FOR THEMSELVES.

1687
01:08:45,320 --> 01:08:51,480
>> LORI, DO YOU WANT TO COMMENT 

1688
01:08:51,480 --> 01:08:58,960
ON THAT.

1689
01:08:58,960 --> 01:09:02,200
WE HAVE RESOURCES THAT HUD 

1690
01:09:02,200 --> 01:09:04,520
RECEIVES ONLY ALLOWS THE HUD TO 

1691
01:09:04,520 --> 01:09:06,960
ASSIST A FRACTION OF THE PEOPLE 

1692
01:09:06,960 --> 01:09:12,320
WHO NEED AND ARE ELIGIBLE FOR 

1693
01:09:12,320 --> 01:09:17,960
HOUSING ASSISTANCE.

1694
01:09:17,960 --> 01:09:19,240
AND THERE'S ECONOMIC BOUNDARIES 

1695
01:09:19,240 --> 01:09:24,360
AND THAT'S SOMETHING WE'RE 

1696
01:09:24,360 --> 01:09:30,800
LIMITED BY STATUE.

1697
01:09:30,800 --> 01:09:32,400
AND WHAT IS DONE IS BETTER 

1698
01:09:32,400 --> 01:09:33,840
CONNECT HOUSING AND HEALTH AND 

1699
01:09:33,840 --> 01:09:38,640
THAT'S SOMETHING THAT THIS 

1700
01:09:38,640 --> 01:09:39,560
PARTNERSHIP BETWEEN HHS AND HUD 

1701
01:09:39,560 --> 01:09:42,160
IS WHAT WE'RE TRYING TO DO IS 

1702
01:09:42,160 --> 01:09:45,280
MAKE SURE THAT THE CONNECTIONS 

1703
01:09:45,280 --> 01:09:48,280
BETWEEN THE SUPPORTIVE SERVICES 

1704
01:09:48,280 --> 01:09:50,160
AND THE HOUSING WORK HAND IN 

1705
01:09:50,160 --> 01:09:51,960
HAND TO PUT PEOPLE IN A 

1706
01:09:51,960 --> 01:09:54,760
SITUATION THAT IS STABLE AND 

1707
01:09:54,760 --> 01:09:56,320
THAT IT IS IN THE COMMUNITY AND 

1708
01:09:56,320 --> 01:09:58,720
THAT IT HAS THE SUPPORTS THAT 

1709
01:09:58,720 --> 01:10:00,960
THE PERSON NEEDS TO LIVE 

1710
01:10:00,960 --> 01:10:01,320
INDEPENDENTLY.

1711
01:10:01,320 --> 01:10:03,000
>> BUT HOUSING DEFINITELY IS A 

1712
01:10:03,000 --> 01:10:04,760
SITUATION THAT NEEDS MORE THAN 

1713
01:10:04,760 --> 01:10:06,120
THE FOUR WALLS.

1714
01:10:06,120 --> 01:10:09,200
IT NEEDS ALL SORTS OF SUPPORTS.

1715
01:10:09,200 --> 01:10:11,280
THERE'S ANOTHER QUESTION THAT 

1716
01:10:11,280 --> 01:10:13,120
COMES UP FREQUENTLY AS I TALK TO

1717
01:10:13,120 --> 01:10:15,200
BUILDERS THAT WOULD LIKE TO DO 

1718
01:10:15,200 --> 01:10:16,560
THINGS WITH AFFORDABLE HOUSING 

1719
01:10:16,560 --> 01:10:18,360
THAT COULD INCLUDE DISABILITIES 

1720
01:10:18,360 --> 01:10:20,240
BUT THERE'S SO MUCH RED TAPE IT 

1721
01:10:20,240 --> 01:10:21,040
ISN'T WORTH THEIR FINANCIAL 

1722
01:10:21,040 --> 01:10:24,720
INVESTMENT TO BE ABLE TO GO 

1723
01:10:24,720 --> 01:10:26,640
AHEAD AND BUILD MORE APARTMENT 

1724
01:10:26,640 --> 01:10:29,360
COMPLEXES WHERE THERE'S EVEN A 

1725
01:10:29,360 --> 01:10:31,760
PORTION OF THE INDIVIDUALS THERE

1726
01:10:31,760 --> 01:10:38,040
THAT CAN BE WITH DISABILITIES.

1727
01:10:38,040 --> 01:10:41,560
AND HARD FOR THE GRANTS AND 

1728
01:10:41,560 --> 01:10:42,320
PROCEDURES THERE.

1729
01:10:42,320 --> 01:10:44,680
CAN THERE BE WORK DONE TO MAKE 

1730
01:10:44,680 --> 01:10:47,360
CERTAIN WE CAN EXPEDITE THESE 

1731
01:10:47,360 --> 01:10:48,360
THINGS BECAUSE THERE'S PEOPLE 

1732
01:10:48,360 --> 01:10:51,280
THAT REALLY WANT TO DO THINGS 

1733
01:10:51,280 --> 01:10:54,160
AND CAN'T AFFORD TO IN THEIR 

1734
01:10:54,160 --> 01:10:55,480
BUSINESS MODELS.

1735
01:10:55,480 --> 01:10:58,080
>> JAYLIN I'M GOING INTERJECT 

1736
01:10:58,080 --> 01:10:59,160
AND MOVE THINGS ALONG.

1737
01:10:59,160 --> 01:11:00,200
LET'S COME BACK TO YOUR QUESTION

1738
01:11:00,200 --> 01:11:02,320
IF THERE'S TIME AT THE END.

1739
01:11:02,320 --> 01:11:05,040
THERE'S A NUMBER OF IACC MEMBERS

1740
01:11:05,040 --> 01:11:06,000
WHO HAVE ADDITIONAL QUESTIONS 

1741
01:11:06,000 --> 01:11:07,120
BUT I APPRECIATE THE POINT.

1742
01:11:07,120 --> 01:11:07,720
IT'S AN IMPORTANT POINT TO BE 

1743
01:11:07,720 --> 01:11:13,320
RAISED.

1744
01:11:13,320 --> 01:11:15,600
AND I THINK DENA GASNER IS NEXT.

1745
01:11:15,600 --> 01:11:26,160
>> THANK YOU, JOSH.

1746
01:11:26,160 --> 01:11:29,120
LIVING IN POVERTY IS A TRAUMA.

1747
01:11:29,120 --> 01:11:29,800
SO MANY AUTISTIC PEOPLE LIVING 

1748
01:11:29,800 --> 01:11:33,960
ON SSI, SOME EVEN ON SSDI HAVE 

1749
01:11:33,960 --> 01:11:38,120
SUCH LIMITED INCOME AND SOME OF 

1750
01:11:38,120 --> 01:11:39,080
THESE HOUSING PROGRAMS -- I 

1751
01:11:39,080 --> 01:11:43,000
TRIED TO APPLY FOR ONE FOR THE 

1752
01:11:43,000 --> 01:11:45,120
ELDERLY ASKED KNOW SUBMIT A 

1753
01:11:45,120 --> 01:11:45,360
CO-SIGNER.

1754
01:11:45,360 --> 01:11:46,920
FOR GOVERNMENT-SUPPORTED HOUSING

1755
01:11:46,920 --> 01:11:47,600
I THINK THAT'S AN OUTRAGEOUS 

1756
01:11:47,600 --> 01:11:51,560
REQUEST.

1757
01:11:51,560 --> 01:11:53,560
AND I APPRECIATE ALL THE 

1758
01:11:53,560 --> 01:11:55,520
INFORMATION WE GOT AND IT 

1759
01:11:55,520 --> 01:11:57,280
SUGGESTS TO ME THAT WE DON'T 

1760
01:11:57,280 --> 01:11:59,560
KNOW THE LEVEL OF HOUSING ISSUES

1761
01:11:59,560 --> 01:12:02,680
AS IT AFFECTS SPECIFICALLY 

1762
01:12:02,680 --> 01:12:03,240
AUTISTIC PEOPLE.

1763
01:12:03,240 --> 01:12:04,520
MUCH OF YOUR STATISTICAL 

1764
01:12:04,520 --> 01:12:06,160
INFORMATION WAS MORE BROADLY 

1765
01:12:06,160 --> 01:12:06,480
APPLIED.

1766
01:12:06,480 --> 01:12:08,960
SO MY QUESTION IS FIRST OF ALL, 

1767
01:12:08,960 --> 01:12:12,320
CAN WE GET SOME MORE SPECIFIC 

1768
01:12:12,320 --> 01:12:13,480
INFORMATION EXCLUSIVE TO AUTISM 

1769
01:12:13,480 --> 01:12:15,600
AND THE OTHER THING I'M VERY 

1770
01:12:15,600 --> 01:12:18,320
CONCERNED ABOUT, AS SHE 

1771
01:12:18,320 --> 01:12:19,280
EXPRESSED NEW JERSEY IS THE SAME

1772
01:12:19,280 --> 01:12:22,240
AS NEW YORK, IF YOU DIDN'T GET A

1773
01:12:22,240 --> 01:12:23,160
DD DIAGNOSIS THOUGH IT WASN'T 

1774
01:12:23,160 --> 01:12:24,560
AVAILABLE TO YOU BEFORE THE AGE 

1775
01:12:24,560 --> 01:12:26,400
OF 18, MANY PROGRAMS ARE NOT 

1776
01:12:26,400 --> 01:12:27,960
AVAILABLE TO YOU.

1777
01:12:27,960 --> 01:12:31,520
THE DSM5 RECOGNIZES AUTISM COULD

1778
01:12:31,520 --> 01:12:33,160
HAVE BEEN PRESENT HISTORICALLY 

1779
01:12:33,160 --> 01:12:34,560
BUT UNRECOGNIZED YET WE DON'T 

1780
01:12:34,560 --> 01:12:38,600
SEE A POLICY CHANGE TO SUPPORT 

1781
01:12:38,600 --> 01:12:39,240
THAT REALITY.

1782
01:12:39,240 --> 01:12:41,040
SO HOW CAN WE HELP HOUSING 

1783
01:12:41,040 --> 01:12:43,560
PEOPLE TO BE MORE SENSITIZED TO 

1784
01:12:43,560 --> 01:12:47,440
THAT AND MORE CARING AND LESS 

1785
01:12:47,440 --> 01:12:48,720
DISRESPECTFUL TO PEOPLE.

1786
01:12:48,720 --> 01:12:51,280
THE WAY I WAS TREATED WAS BAD 

1787
01:12:51,280 --> 01:12:54,720
AND I HAVE BIG GIRL PANTIES BUT 

1788
01:12:54,720 --> 01:12:57,360
MORE VULNERABLE PEOPLE ON THE 

1789
01:12:57,360 --> 01:13:01,520
BRINK OF HOMELESSNESS THIS TYPE 

1790
01:13:01,520 --> 01:13:03,200
OF TREATMENT BECOMES ABUSIVE.

1791
01:13:03,200 --> 01:13:05,080
HOW CAN WE ENHANCE FACILITATE 

1792
01:13:05,080 --> 01:13:05,640
UNDERSTANDING AS A BODY AND 

1793
01:13:05,640 --> 01:13:17,760
COMMUNITY.

1794
01:13:17,760 --> 01:13:18,920
>> I'M SORRY ABOUT YOUR 

1795
01:13:18,920 --> 01:13:19,200
EXPERIENCE.

1796
01:13:19,200 --> 01:13:21,240
I'M NOT SURE I KNOW THE 

1797
01:13:21,240 --> 01:13:27,240
SPECIFICS TO BE ABLE TO ADDRESS 

1798
01:13:27,240 --> 01:13:27,400
IT.

1799
01:13:27,400 --> 01:13:29,680
IN TERMS OF THE RESEARCH 

1800
01:13:29,680 --> 01:13:30,680
SPECIFIC TO PEOPLE WITH 

1801
01:13:30,680 --> 01:13:34,920
DISABILITIES WITH AUTISM, WE'RE 

1802
01:13:34,920 --> 01:13:36,840
TRYING TO DO MORE AND WE'RE IN 

1803
01:13:36,840 --> 01:13:40,080
COVERINGS WITH OTHER AGENCIES 

1804
01:13:40,080 --> 01:13:47,560
AND TRYING TO FIND WAYS WITH 

1805
01:13:47,560 --> 01:14:03,280
LINKED FORMS TO AND LOOKING AT 

1806
01:14:03,280 --> 01:14:07,200
BARRIERS AND LOOKING AT 

1807
01:14:07,200 --> 01:14:09,000
ASSISTANCE IN HOUSING.

1808
01:14:09,000 --> 01:14:11,280
>> IF I CAN JUMP IN THE QUESTION

1809
01:14:11,280 --> 01:14:12,360
YOU RAISED IS IMPORTANT.

1810
01:14:12,360 --> 01:14:14,720
INCREASING PEOPLE'S AWARENESS OF

1811
01:14:14,720 --> 01:14:18,240
THE NEEDS OF PEOPLE WITH AUTISM 

1812
01:14:18,240 --> 01:14:20,320
IS REALLY ESSENTIAL.

1813
01:14:20,320 --> 01:14:24,160
WE EXPERIENCE SIMILAR SITUATIONS

1814
01:14:24,160 --> 01:14:26,160
AS SOMETIMES WHEN EMERGENCY 

1815
01:14:26,160 --> 01:14:29,000
DISASTERS OCCUR AND HELPING TO 

1816
01:14:29,000 --> 01:14:31,240
TRAIN UP EMERGENCY STAFF AND OUR

1817
01:14:31,240 --> 01:14:32,360
ASSISTIVE TECHNOLOGY PROGRAMS 

1818
01:14:32,360 --> 01:14:35,360
HAVE BEEN QUITE INSTRUMENTAL IN 

1819
01:14:35,360 --> 01:14:36,200
HELPING TO INCREASE EDUCATION 

1820
01:14:36,200 --> 01:14:42,080
ABOUT THE NEEDS OF PEOPLE WITH 

1821
01:14:42,080 --> 01:14:43,880
AUTISM AND WHAT ASSISTIVE 

1822
01:14:43,880 --> 01:14:45,080
TECHNOLOGY MAY BE AVAILABLE TO 

1823
01:14:45,080 --> 01:14:51,520
HELP ENGAGE WITH THEM AND 

1824
01:14:51,520 --> 01:14:53,840
SOMETIMES A PERSON IS 

1825
01:14:53,840 --> 01:14:57,280
COMMUNICATIVE BUT CAPABLE OF 

1826
01:14:57,280 --> 01:14:59,240
COMMUNICATING IF THEY HAVE 

1827
01:14:59,240 --> 01:15:00,760
DEVICES TO COMMUNICATE WITH 

1828
01:15:00,760 --> 01:15:01,400
PEOPLE VERBALLY.

1829
01:15:01,400 --> 01:15:02,880
WE FOUND THERE'S BEEN SOME 

1830
01:15:02,880 --> 01:15:04,080
STRATEGIES BUT WE KNOW WE HAVE A

1831
01:15:04,080 --> 01:15:06,280
LOT OF WORK TO DO AND WILL TAKE 

1832
01:15:06,280 --> 01:15:08,360
ALL OF US TO CONTINUE TO 

1833
01:15:08,360 --> 01:15:10,560
INCREASE KNOWLEDGE AROUND HOW WE

1834
01:15:10,560 --> 01:15:11,560
CAN BETTER INTERACT AND 

1835
01:15:11,560 --> 01:15:12,880
UNDERSTAND PEOPLE WITH AUTISM 

1836
01:15:12,880 --> 01:15:14,360
AND BE RESPONSIVE TO THEIR 

1837
01:15:14,360 --> 01:15:15,280
NEEDS.

1838
01:15:15,280 --> 01:15:18,160
>> THANKS FOR YOUR EFFORTS.

1839
01:15:18,160 --> 01:15:23,920
>> MORANICA, YOU'RE NEXT.

1840
01:15:23,920 --> 01:15:25,320
>> HI, EVERYBODY.

1841
01:15:25,320 --> 01:15:26,560
THIS IS STEVEN.

1842
01:15:26,560 --> 01:15:28,480
I'LL READ HER COMMENT FOR HER.

1843
01:15:28,480 --> 01:15:29,640
>> PLEASE DO.

1844
01:15:29,640 --> 01:15:31,520
>> AS AN AUTISTIC ADULT OF 

1845
01:15:31,520 --> 01:15:34,040
COLOR, LIKE MANY IN OUR 

1846
01:15:34,040 --> 01:15:35,520
COMMUNITY, HAS EXPERIENCED 

1847
01:15:35,520 --> 01:15:36,160
HOMELESSNESS.

1848
01:15:36,160 --> 01:15:38,560
I AGREE WITH MANY OF THE 

1849
01:15:38,560 --> 01:15:39,320
BARRIERS SHARED.

1850
01:15:39,320 --> 01:15:40,960
THE SETTINGS ARE NOT EQUIPPED 

1851
01:15:40,960 --> 01:15:42,840
FOR OUR NEEDS.

1852
01:15:42,840 --> 01:15:44,360
FIRST, SOMETIMES IT'S NEARLY 

1853
01:15:44,360 --> 01:15:47,200
IMPOSSIBLE TO GET HELPED IN THE 

1854
01:15:47,200 --> 01:15:49,280
FIRST PLACE BECAUSE THERE'S A 

1855
01:15:49,280 --> 01:15:51,080
BUREAUCRATIC BARRIER UNLESS YOU 

1856
01:15:51,080 --> 01:15:52,560
KNOW WHERE 5 MILLION DOCUMENTS 

1857
01:15:52,560 --> 01:15:54,880
ARE WHICH YOU MAY NOT HAVE IN A 

1858
01:15:54,880 --> 01:15:55,360
CENTRAL PLACE.

1859
01:15:55,360 --> 01:15:57,120
WHEN HAVE YOU EXECUTIVE 

1860
01:15:57,120 --> 01:15:58,240
FUNCTIONING ISSUES AND MAY NOT 

1861
01:15:58,240 --> 01:16:02,760
HAVE ALWAYS HAD ACCESS TO ALL 

1862
01:16:02,760 --> 01:16:04,560
YOUR OWN LEGAL AND MEDICAL 

1863
01:16:04,560 --> 01:16:06,920
DOCUMENTATION IS A CHALLENGE AND

1864
01:16:06,920 --> 01:16:10,160
IF YOU'RE TRANS-GENDER 

1865
01:16:10,160 --> 01:16:11,560
NON-CONFORMING NAMES CAN BE A 

1866
01:16:11,560 --> 01:16:11,840
PROBLEM.

1867
01:16:11,840 --> 01:16:15,200
THE PLACES ARE ALSO A SENSORY 

1868
01:16:15,200 --> 01:16:16,480
NIGHTMARE, LOUD, BRIGHT, 

1869
01:16:16,480 --> 01:16:17,200
HORRIBLE SMELLS.

1870
01:16:17,200 --> 01:16:19,160
TO BE FORCED TO HAVE CERTAIN 

1871
01:16:19,160 --> 01:16:20,960
ROOMMATES AND/OR CHORES, BEING 

1872
01:16:20,960 --> 01:16:23,200
FORCED TO ENGAGE IN CERTAIN 

1873
01:16:23,200 --> 01:16:23,520
ACTIVITIES.

1874
01:16:23,520 --> 01:16:25,720
HAVING TO WAIT EXTENDED PERIOD 

1875
01:16:25,720 --> 01:16:27,120
OF TIME FOR AN OVER BURDENED 

1876
01:16:27,120 --> 01:16:28,640
CASE MANAGER TO FIGURE OUT HOW 

1877
01:16:28,640 --> 01:16:32,120
TO HELP YOU ONLY TO BE HANDED A 

1878
01:16:32,120 --> 01:16:33,680
HUGE PACKET OF OUTDATED 

1879
01:16:33,680 --> 01:16:34,720
RESOURCES AND THE STRUCTURE TO 

1880
01:16:34,720 --> 01:16:38,520
GO AT THIS PLACE TO APPLY TO 

1881
01:16:38,520 --> 01:16:39,240
THIS PLACE.

1882
01:16:39,240 --> 01:16:41,440
THERE'S NOT ALTERNATIVE NEEDS OF

1883
01:16:41,440 --> 01:16:47,560
COMMUNICATION TO HELP NAVIGATE A

1884
01:16:47,560 --> 01:16:54,360
COGNITIVELY INACCESSIBLE THINGS 

1885
01:16:54,360 --> 01:16:56,520
LIKE VIOLENCE AND BE INEBRIATED 

1886
01:16:56,520 --> 01:17:03,720
AND BEING EASY PREY FOR THE 

1887
01:17:03,720 --> 01:17:07,000
PREDATORS AND IT'S EASY TO BE 

1888
01:17:07,000 --> 01:17:10,360
ASSAULTED IN THOSE PLACES AND 

1889
01:17:10,360 --> 01:17:13,000
FOR THOSE IT'S DIFFICULT TO FIND

1890
01:17:13,000 --> 01:17:14,360
PLACE TO CRASH THAT NIGHT OR 

1891
01:17:14,360 --> 01:17:17,120
STAY WITH THE AER.

1892
01:17:17,120 --> 01:17:18,240
THERE'S LITTLE TO NO 

1893
01:17:18,240 --> 01:17:20,360
UNDERSTANDING OF THE UNIQUE 

1894
01:17:20,360 --> 01:17:22,040
NEEDS THAT MAY EXIST IN THE 

1895
01:17:22,040 --> 01:17:22,800
AUTISTIC POPULATION AND SEEMS TO

1896
01:17:22,800 --> 01:17:24,800
BE LITTLE EFFORT TO ADDRESS 

1897
01:17:24,800 --> 01:17:25,000
THEM.

1898
01:17:25,000 --> 01:17:27,000
THIS IS ALSO EXACERBATED IF 

1899
01:17:27,000 --> 01:17:29,480
YOU'RE FROM A MARGINALIZED 

1900
01:17:29,480 --> 01:17:30,800
RACIAL OR GENDER IDENTITY.

1901
01:17:30,800 --> 01:17:34,720
IT'S TRAUMATIC TO HAVE 

1902
01:17:34,720 --> 01:17:35,720
INSTABILITY IN ONE'S HOUSING IN 

1903
01:17:35,720 --> 01:17:37,360
THE FIRST PLACE.

1904
01:17:37,360 --> 01:17:37,800
THE SITUATIONS OFTEN 

1905
01:17:37,800 --> 01:17:49,720
RETRAUMATIZE YOU.

1906
01:17:49,720 --> 01:17:51,360
>> THANK YOU.

1907
01:17:51,360 --> 01:18:18,400
ANY REACTIONS FROM OUR SPEAKERS?

1908
01:18:18,400 --> 01:18:23,560
AND WE HAVE A STUDY LOOKING AT 

1909
01:18:23,560 --> 01:18:24,560
SUCCESSFUL APPROACHES IN THE 

1910
01:18:24,560 --> 01:18:26,640
HOUSING SEARCH PROCESS FOR 

1911
01:18:26,640 --> 01:18:27,560
PEOPLE WITH DISABILITIES TRYING 

1912
01:18:27,560 --> 01:18:30,560
TO IDENTIFY WHAT ARE THE MAJOR 

1913
01:18:30,560 --> 01:18:32,360
BARRIERS FOR PEOPLE WITH 

1914
01:18:32,360 --> 01:18:35,560
DIFFERENT DISABILITIES AND 

1915
01:18:35,560 --> 01:18:37,080
COMING FROM DIFFERENT SETTINGS 

1916
01:18:37,080 --> 01:18:39,000
AND HAVING OTHER DIFFERENT 

1917
01:18:39,000 --> 01:18:40,720
SITUATIONS AND TRYING TO 

1918
01:18:40,720 --> 01:18:43,520
UNDERSTAND WHAT ARE SUCCESSFUL 

1919
01:18:43,520 --> 01:18:48,280
APPROACHES THAT HELP THEM APPLY 

1920
01:18:48,280 --> 01:18:49,920
FOR HOUSING ASSISTANCE AND LOOK 

1921
01:18:49,920 --> 01:18:53,120
FOR HOUSING AND SEARCH FOR 

1922
01:18:53,120 --> 01:18:56,000
HOUSING VISIT UNITS AND IDENTIFY

1923
01:18:56,000 --> 01:19:03,360
THE UNITS AND MOVING TO UNITS.

1924
01:19:03,360 --> 01:19:04,200
WE ARE TRYING TO UNDERSTAND 

1925
01:19:04,200 --> 01:19:07,560
WHERE THE RESOURCES AND WHERE 

1926
01:19:07,560 --> 01:19:09,360
COMMUNITIES HAVE BEEN SUCCESSFUL

1927
01:19:09,360 --> 01:19:15,040
AT TRANSITIONING PEOPLE INTO 

1928
01:19:15,040 --> 01:19:23,240
ASSISTED HOUSING.

1929
01:19:23,240 --> 01:19:24,800
AND THERE'S A DIRECTION OF 

1930
01:19:24,800 --> 01:19:26,560
IDENTIFYING SPECIFIC NEEDS AND 

1931
01:19:26,560 --> 01:19:31,560
CONNECTING THE SERVICES AND 

1932
01:19:31,560 --> 01:19:44,000
HOUSING SIDE AND THERE'S A 

1933
01:19:44,000 --> 01:19:44,960
RECOGNITION CERTAIN POPULATIONS 

1934
01:19:44,960 --> 01:19:46,120
NEED HELP IN APPLYING FOR 

1935
01:19:46,120 --> 01:19:48,520
HOUSING IN LOOKING FOR HOUSING 

1936
01:19:48,520 --> 01:19:51,920
AND IN MOVING INTO HOUSING.

1937
01:19:51,920 --> 01:19:57,080
THAT'S SOMETHING THAT IT'S GOOD 

1938
01:19:57,080 --> 01:20:08,920
TO SEE AND THE MAINSTREAM 

1939
01:20:08,920 --> 01:20:12,920
VOUCHER PROGRAM ISSUED AN AEXTRA

1940
01:20:12,920 --> 01:20:15,800
$500 FOR PHAs TO HELP WITH THE 

1941
01:20:15,800 --> 01:20:19,000
HOUSING SEARCH PROCESS AND 

1942
01:20:19,000 --> 01:20:21,320
INCENTIVING LANDLORD TO 

1943
01:20:21,320 --> 01:20:24,000
PARTICIPATE MORE IN HUD 

1944
01:20:24,000 --> 01:20:24,360
PROGRAMS.

1945
01:20:24,360 --> 01:20:25,960
I THINK ALL THE EFFORTS CAN 

1946
01:20:25,960 --> 01:20:49,080
HOPEFULLY MAKE THINGS BETTER.

1947
01:20:49,080 --> 01:20:51,240
>> IVANOVA, YOUR NEXT.

1948
01:20:51,240 --> 01:20:56,240
>> ARE THERE LOOKING AT POLICIES

1949
01:20:56,240 --> 01:20:57,720
MAKING IT ACCESSIBLE FOR PEOPLE 

1950
01:20:57,720 --> 01:21:03,320
AND IS THERE A WAY WE CAN LOOK 

1951
01:21:03,320 --> 01:21:09,160
AT LIKE MAKE IT SO THAT PEOPLE 

1952
01:21:09,160 --> 01:21:14,120
AND DISCRIMINATION IS HAPPENING 

1953
01:21:14,120 --> 01:21:15,320
INTERDIRECTLY AND HOW DO WE 

1954
01:21:15,320 --> 01:21:20,280
ADDRESS THAT WITH THE SHELTERS 

1955
01:21:20,280 --> 01:21:22,800
TO MAKE SURE THERE ARE WAYS TO 

1956
01:21:22,800 --> 01:21:27,320
MODIFY THINGS TO ACCOMMODATE 

1957
01:21:27,320 --> 01:21:33,080
AUTISTICS?

1958
01:21:33,080 --> 01:21:36,280
>> THANK YOU.

1959
01:21:36,280 --> 01:21:41,720
>> HUD HAS THE FAIR HOUSING AND 

1960
01:21:41,720 --> 01:21:43,560
EQUAL OPPORTUNITIES OFFICE THAT 

1961
01:21:43,560 --> 01:21:52,800
IS DEVOTED TO ENFORCING FIGHTING

1962
01:21:52,800 --> 01:21:53,840
AGAINST DISCRIMINATION FIGHTING 

1963
01:21:53,840 --> 01:21:56,360
AGAINST PEOPLE WITH DISABILITIES

1964
01:21:56,360 --> 01:21:59,240
AND I KNOW THAT THE CASE OF 

1965
01:21:59,240 --> 01:22:04,320
PEOPLE WITH AUTISM IS SOMETHING 

1966
01:22:04,320 --> 01:22:11,160
THAT THEY HAVE SEEN AND WORKING 

1967
01:22:11,160 --> 01:22:13,360
ON CASES LIKE THAT AND FINDING 

1968
01:22:13,360 --> 01:22:15,280
RESOLUTIONS AND MAKING SURE 

1969
01:22:15,280 --> 01:22:16,800
THERE'S NO DISCRIMINATION IN THE

1970
01:22:16,800 --> 01:22:17,160
HOUSING MARKET.

1971
01:22:17,160 --> 01:22:22,000
>> I'D ADD TO THAT, ACL FUNDS 

1972
01:22:22,000 --> 01:22:22,800
PROTECTION AND ADVOCACY 

1973
01:22:22,800 --> 01:22:23,840
ORGANIZATIONS IN EVERY ONE OF 

1974
01:22:23,840 --> 01:22:26,760
THE STATES AND TERRITORIES 

1975
01:22:26,760 --> 01:22:28,960
AVAILABLE TO SUPPORT PEOPLE WITH

1976
01:22:28,960 --> 01:22:29,920
DISABILITIES WHO MAY BE FEELING 

1977
01:22:29,920 --> 01:22:31,520
AS THOUGH THEY'RE NOT BEING 

1978
01:22:31,520 --> 01:22:33,160
TREATED APPROPRIATELY OR BEING 

1979
01:22:33,160 --> 01:22:33,840
DISCRIMINATED AGAINST, THEY'RE 

1980
01:22:33,840 --> 01:22:37,520
THERE TO HELP AND SUPPORT YOU 

1981
01:22:37,520 --> 01:22:40,400
THROUGH THOSE PROCESSES AND IN 

1982
01:22:40,400 --> 01:22:41,720
ADDITION THROUGH THE OLDER 

1983
01:22:41,720 --> 01:22:44,280
AMERICANS ACT WE HAVE A NETWORK 

1984
01:22:44,280 --> 01:22:46,560
OF ELDER RIGHTS SERVICES 

1985
01:22:46,560 --> 01:22:48,640
THROUGHOUT ALL THE STATES AND 

1986
01:22:48,640 --> 01:22:50,280
TERRITORIES THAT ARE AVAILABLE 

1987
01:22:50,280 --> 01:22:51,760
TO TO HELP SUPPORT INDIVIDUALS 

1988
01:22:51,760 --> 01:22:54,160
WHO MAY BE EXPERIENCING 

1989
01:22:54,160 --> 01:22:54,520
DISCRIMINATION.

1990
01:22:54,520 --> 01:22:55,560
I WOULD OFFER THOSE RESOURCES 

1991
01:22:55,560 --> 01:23:07,000
TOO.

1992
01:23:07,000 --> 01:23:11,560
>> THANK YOU, TERESA AND LORI, 

1993
01:23:11,560 --> 01:23:13,160
I'M BAD WITH NAMES AND THE 

1994
01:23:13,160 --> 01:23:15,440
PERSON WHO PRESENTED BY VIDEO 

1995
01:23:15,440 --> 01:23:21,720
FROM NEW JERSEY.

1996
01:23:21,720 --> 01:23:23,720
AND I HAVE A COMMENT AND BRIEF 

1997
01:23:23,720 --> 01:23:23,960
QUESTIONS.

1998
01:23:23,960 --> 01:23:27,240
THE COMMENT WAS ON THE TOOL KIT 

1999
01:23:27,240 --> 01:23:28,240
MENTIONED EARLIER IN THE 

2000
01:23:28,240 --> 01:23:30,360
PRESENTATION AS FAR AS THE 

2001
01:23:30,360 --> 01:23:31,720
POSSIBILITIES OF HOMELESSNESS 

2002
01:23:31,720 --> 01:23:33,320
AND AUTISTIC PEOPLE AND OTHER 

2003
01:23:33,320 --> 01:23:35,520
FOLKS WITH DEVELOPMENT 

2004
01:23:35,520 --> 01:23:40,600
DISABILITIES AND NIMH FUNDED 

2005
01:23:40,600 --> 01:23:41,880
WITH A RESEARCH GRANT SEVERAL 

2006
01:23:41,880 --> 01:23:43,960
YEARS AGO RESEARCH THAT LED TO A

2007
01:23:43,960 --> 01:23:46,640
TOOL KIT FOR HEALTH CARE FOR 

2008
01:23:46,640 --> 01:23:48,400
ACCESS FOR AUTISTIC ADULTS IT'S 

2009
01:23:48,400 --> 01:23:54,560
LIKE A PORTAL SITE SET UP FOR 

2010
01:23:54,560 --> 01:23:55,560
BOTH HEALTH CARE SERVICE 

2011
01:23:55,560 --> 01:23:56,760
PROVIDERS IS ONE HALF OF THE 

2012
01:23:56,760 --> 01:23:59,560
PAGE AND THE OTHER HALF IS FOR 

2013
01:23:59,560 --> 01:24:02,080
AUTISTIC ADULTS AND ALLIES AS 

2014
01:24:02,080 --> 01:24:02,960
FAR AS ACCESSING THE HEALTH CARE

2015
01:24:02,960 --> 01:24:04,360
SYSTEM AND WONDERING IF THAT'S 

2016
01:24:04,360 --> 01:24:08,720
SOMETHING THAT ACL AND HUD COULD

2017
01:24:08,720 --> 01:24:11,160
POTENTIALLY EXPLORE INTERAGENCY 

2018
01:24:11,160 --> 01:24:14,680
WITH YOUR SISTER AGENCIES AS FAR

2019
01:24:14,680 --> 01:24:19,360
AS THE CROSS-CONNECTION 

2020
01:24:19,360 --> 01:24:20,880
ESPECIALLY BECAUSE OF THE 

2021
01:24:20,880 --> 01:24:22,360
EMPLOYMENT FOCUS BECAUSE OR 

2022
01:24:22,360 --> 01:24:25,600
CONNECTING OR HAVING STABLE 

2023
01:24:25,600 --> 01:24:27,680
HOUSING LIKE TRANSPORTATION IS 

2024
01:24:27,680 --> 01:24:30,720
CROSS-CONNECTED TO OBTAIN AND 

2025
01:24:30,720 --> 01:24:31,520
MAINTAIN MEANINGFUL EMPLOYMENT.

2026
01:24:31,520 --> 01:24:33,320
I ALSO WONDERED ON THE DATA END,

2027
01:24:33,320 --> 01:24:35,520
I'M A BIG FAN OF HAVING BETTER 

2028
01:24:35,520 --> 01:24:41,400
QUALITATIVE AND QUANTITATIVE AND

2029
01:24:41,400 --> 01:24:45,360
OUR DATA COMES FROM THE UNITED 

2030
01:24:45,360 --> 01:24:46,640
KINGDOM RATHER THAN HERE.

2031
01:24:46,640 --> 01:24:50,040
IS MOST THE DISABILITY DATA WE 

2032
01:24:50,040 --> 01:24:53,560
DO HAVE IN HOUSING OVER ATA CL 

2033
01:24:53,560 --> 01:24:57,720
AND HUD ACROSS DISABILITY OR 

2034
01:24:57,720 --> 01:25:00,640
MAYBE BROADER OR COGNITIVE 

2035
01:25:00,640 --> 01:25:01,000
DISABILITY?

2036
01:25:01,000 --> 01:25:05,160
DO WE HAVE ANYTHING AUTISM 

2037
01:25:05,160 --> 01:25:07,200
SPECIFIC IN THE DATA ON HOUSING 

2038
01:25:07,200 --> 01:25:09,480
AND HOMELESSNESS AND DO WE HAVE 

2039
01:25:09,480 --> 01:25:12,920
ANYTHING THAT INTERCONNECTS BACK

2040
01:25:12,920 --> 01:25:15,600
TO DATA AND PAST EMPLOYMENT FOR 

2041
01:25:15,600 --> 01:25:22,720
FOLKS?

2042
01:25:22,720 --> 01:25:23,560
>> WE'LL LOOK INTO THAT GREAT TO

2043
01:25:23,560 --> 01:25:32,440
KNOW ABOUT IT.

2044
01:25:32,440 --> 01:25:34,400
AND AS FAR AS MORE DATA ON 

2045
01:25:34,400 --> 01:25:35,520
DISABILITY.

2046
01:25:35,520 --> 01:25:38,760
THERE'S THE AMERICAN COMMUNITY 

2047
01:25:38,760 --> 01:25:40,240
SURVEY, THE AMERICAN HOUSING 

2048
01:25:40,240 --> 01:25:40,560
SURVEY.

2049
01:25:40,560 --> 01:25:45,560
THOSE SURVEYS INCLUDE SIX 

2050
01:25:45,560 --> 01:25:46,720
QUESTIONS ABOUT DISABILITIES 

2051
01:25:46,720 --> 01:25:50,360
THAT GIVE US MORE INFORMATION 

2052
01:25:50,360 --> 01:25:55,440
ABOUT PEOPLE THAT HAVE COGNITIVE

2053
01:25:55,440 --> 01:26:07,160
DISABILITY

2054
01:26:07,160 --> 01:26:07,520
DISABILITIES.

2055
01:26:07,520 --> 01:26:08,920
THE FIRST STUDY WAS LOOKING AT 

2056
01:26:08,920 --> 01:26:10,360
DISABILITIES IN GENERAL BUT THE 

2057
01:26:10,360 --> 01:26:14,920
SURVEY REALLY PRESENTS AN 

2058
01:26:14,920 --> 01:26:16,960
OPPORTUNITY TO LOOK MORE CLOSELY

2059
01:26:16,960 --> 01:26:18,520
AT CHILDREN WITH AUTISM, FOR 

2060
01:26:18,520 --> 01:26:18,840
EXAMPLE.

2061
01:26:18,840 --> 01:26:22,400
THAT'S A QUESTION THAT THE 

2062
01:26:22,400 --> 01:26:23,920
NATIONAL HEALTH INTERVIEW SURVEY

2063
01:26:23,920 --> 01:26:24,280
HAS.

2064
01:26:24,280 --> 01:26:27,320
WE COULD DO MORE RESEARCH THERE 

2065
01:26:27,320 --> 01:26:30,000
AND WE HOPE RESEARCHERS WOULD 

2066
01:26:30,000 --> 01:26:31,200
ACCESS THE DATA.

2067
01:26:31,200 --> 01:26:35,560
THE DATA IS AVAILABLE TO 

2068
01:26:35,560 --> 01:26:38,560
RESEARCHERS AND RESEARCHERS WITH

2069
01:26:38,560 --> 01:26:41,920
MORE MORE EXPERTISE IN THE AREA 

2070
01:26:41,920 --> 01:26:42,880
ARE WELCOME AND WE ENCOURAGE 

2071
01:26:42,880 --> 01:26:48,280
THEM TO ACCESS THE DATA AND HELP

2072
01:26:48,280 --> 01:26:54,160
US UNDERSTAND MORE WHAT THE 

2073
01:26:54,160 --> 01:27:01,400
NEEDS ARE THE EXTENT OF PEOPLE 

2074
01:27:01,400 --> 01:27:04,720
IN THE AUTISM SPECTRUM OF PEOPLE

2075
01:27:04,720 --> 01:27:08,120
IN THE HUD-ASSISTED HOUSING.

2076
01:27:08,120 --> 01:27:11,600
>> THANK YOU, SCOTT FOR SHARING 

2077
01:27:11,600 --> 01:27:14,520
THAT TOOL KITS AND WE'D BE 

2078
01:27:14,520 --> 01:27:16,560
INTERESTED IN PARTNERING WITH 

2079
01:27:16,560 --> 01:27:19,560
DOL AND CONTINUING TO BUILD TOOL

2080
01:27:19,560 --> 01:27:21,360
KITS AND PROVIDE SUPPORTS AND 

2081
01:27:21,360 --> 01:27:22,560
RESOURCES AS WE CAN.

2082
01:27:22,560 --> 01:27:25,000
ON THE DATA PIECE, I'LL HAVE TO 

2083
01:27:25,000 --> 01:27:27,560
CONSULT OUR COLLEAGUES THAT WORK

2084
01:27:27,560 --> 01:27:28,880
IN OUR INSTITUTIONAL DISABILITY 

2085
01:27:28,880 --> 01:27:31,560
TO GET YOU A SPECIFIC ANSWER ON 

2086
01:27:31,560 --> 01:27:37,040
THAT QUESTION BUT ONE THE THINGS

2087
01:27:37,040 --> 01:27:40,960
WE SHARED IS WE HAVE DIFFERENT 

2088
01:27:40,960 --> 01:27:44,200
TYPES OF RESEARCH IN ADDITION TO

2089
01:27:44,200 --> 01:27:46,640
THE WORK THAT DR. REICHERT 

2090
01:27:46,640 --> 01:27:48,720
MENTIONED FUNDED TO CONTINUE TO 

2091
01:27:48,720 --> 01:27:52,040
LEARN MORE ABOUT PEOPLE WITH 

2092
01:27:52,040 --> 01:27:57,320
DISABILITIES AND HOW WE CAN 

2093
01:27:57,320 --> 01:27:59,360
BETTER SUPPORT THEM.

2094
01:27:59,360 --> 01:28:01,120
AND WE LOOK FORWARD TO 

2095
01:28:01,120 --> 01:28:03,360
CONTINUING TO WORK WITH DOL.

2096
01:28:03,360 --> 01:28:05,120
>> THANKS, LORI.

2097
01:28:05,120 --> 01:28:06,360
WE APPRECIATE OUR PARTNERSHIPS 

2098
01:28:06,360 --> 01:28:07,680
WITH SISTER AGENCY.

2099
01:28:07,680 --> 01:28:09,640
>> AND TO ADD SCOTT THE 

2100
01:28:09,640 --> 01:28:11,360
INTERAGENCY WORK GROUP ON AUTISM

2101
01:28:11,360 --> 01:28:12,720
IS ALSO HAPPY TO HELP FACILITATE

2102
01:28:12,720 --> 01:28:13,560
ON THAT END TOO.

2103
01:28:13,560 --> 01:28:27,960
>> COOL, THANKS, SUSAN.

2104
01:28:27,960 --> 01:28:31,040
>> I WANTED TO FOLLOW-UP ON THE 

2105
01:28:31,040 --> 01:28:31,600
QUESTIONS ABOUT ENFORCING 

2106
01:28:31,600 --> 01:28:36,800
ACCESSIBILITY AND PUBLIC 

2107
01:28:36,800 --> 01:28:39,400
SERVICES INCLUDING HOMELESS 

2108
01:28:39,400 --> 01:28:40,200
SHELTERS.

2109
01:28:40,200 --> 01:28:42,080
I'M A LITTLE BIT CONCERNED THAT 

2110
01:28:42,080 --> 01:28:45,720
SIMPLY USING THE FHA WOULD NOT 

2111
01:28:45,720 --> 01:28:47,360
BE ADEQUATE TO ADDRESS SOME OF 

2112
01:28:47,360 --> 01:28:50,720
THE MORE STRUCTURAL BARRIERS 

2113
01:28:50,720 --> 01:28:54,720
THAT WE SEE IN SHELTER PROGRAMS 

2114
01:28:54,720 --> 01:28:56,080
WITHOUT A FUNDAMENTAL ALTERATION

2115
01:28:56,080 --> 01:28:59,000
THERE'S SOME THINGS THAT MAKE 

2116
01:28:59,000 --> 01:29:04,800
SHELTERS PROGRAMMATICALLY 

2117
01:29:04,800 --> 01:29:07,560
INACCESSIBLE TO SOME PEOPLE AND 

2118
01:29:07,560 --> 01:29:09,200
THEY'RE NOT PARTICULARLY SAFE 

2119
01:29:09,200 --> 01:29:11,160
FOR AUTISTIC PEOPLE.

2120
01:29:11,160 --> 01:29:13,160
THEY CAN'T ACCOMMODATE PERSONAL 

2121
01:29:13,160 --> 01:29:15,360
CARE ASSISTANCE OR PROVIDERS 

2122
01:29:15,360 --> 01:29:17,320
COMING IN THE SHELTERS TO ASSIST

2123
01:29:17,320 --> 01:29:19,000
PEOPLE.

2124
01:29:19,000 --> 01:29:20,640
THE SHELTER STAFF DO NOT PROVIDE

2125
01:29:20,640 --> 01:29:23,480
SERVICES THEMSELVES.

2126
01:29:23,480 --> 01:29:24,360
SOMEONE WHO HAS TECHNOLOGY MIGHT

2127
01:29:24,360 --> 01:29:27,280
NOT BE ABLE TO ACCESS THE 

2128
01:29:27,280 --> 01:29:30,520
SHELTER BECAUSE IT'S SO LIKELY 

2129
01:29:30,520 --> 01:29:33,360
TO BE STOLEN.

2130
01:29:33,360 --> 01:29:38,720
AND I WANT TO ASK THAT WE ALSO 

2131
01:29:38,720 --> 01:29:42,120
THINK ABOUT TITLE II TO ENSURE 

2132
01:29:42,120 --> 01:29:43,600
LOCALITIES IF THEY'RE GOING TO 

2133
01:29:43,600 --> 01:29:47,080
BE PROVIDING SHELTER SERVICES TO

2134
01:29:47,080 --> 01:29:51,800
THE GENERAL POPULATION MIGHT 

2135
01:29:51,800 --> 01:29:54,200
REALLY HAVE TO EXPLORE OPTIONS 

2136
01:29:54,200 --> 01:29:55,560
TO PROVIDE EQUIVALENT PROGRAMS 

2137
01:29:55,560 --> 01:29:57,560
TO PEOPLE WITH DISABILITIES WHO 

2138
01:29:57,560 --> 01:30:01,320
REALLY CAN'T ACCESS A HOMELESS 

2139
01:30:01,320 --> 01:30:03,320
SHELTER AND INCLUDING HOUSING 

2140
01:30:03,320 --> 01:30:07,520
FIRST APPROACHES AND GETTING 

2141
01:30:07,520 --> 01:30:10,800
PEOPLE INTO INDIVIDUAL HOUSING 

2142
01:30:10,800 --> 01:30:12,720
AS SOON AS POSSIBLE SO PEOPLE 

2143
01:30:12,720 --> 01:30:14,360
DON'T SPEND SIGNIFICANT TIME IN 

2144
01:30:14,360 --> 01:30:14,960
SHELTERS THAT ARE NOT GOING TO 

2145
01:30:14,960 --> 01:30:23,120
WORK.

2146
01:30:23,120 --> 01:30:25,160
>> WE HAVE A COMMENT OR QUESTION

2147
01:30:25,160 --> 01:30:27,560
TO BE READ OUT LOUD.

2148
01:30:27,560 --> 01:30:29,120
STEVE.

2149
01:30:29,120 --> 01:30:31,480
>> THIS QUESTION IS FROM 

2150
01:30:31,480 --> 01:30:32,360
LINDSAY.

2151
01:30:32,360 --> 01:30:33,760
IN THE OVERVIEW ABOUT THE 

2152
01:30:33,760 --> 01:30:35,480
SUBSIDIZED RENT PROGRAM AND 

2153
01:30:35,480 --> 01:30:39,200
VOUCHERS, YOU MENTIONED THE AGE 

2154
01:30:39,200 --> 01:30:40,440
QUALIFICATION IS 18-61.

2155
01:30:40,440 --> 01:30:42,280
WHY IS THE AGE CUT OFF CURRENTLY

2156
01:30:42,280 --> 01:30:45,360
AT 61 AND IS THERE A STRATEGY 

2157
01:30:45,360 --> 01:30:47,440
BEING CREATED TO PROVIDE SUPPORT

2158
01:30:47,440 --> 01:30:48,120
FOR INDIVIDUALS OVER THE AGE OF 

2159
01:30:48,120 --> 01:31:00,320
61?

2160
01:31:00,320 --> 01:31:06,120
>> SO HUD AT 62 HUD CONSIDERS 

2161
01:31:06,120 --> 01:31:08,280
THE POPULATION OF OLDER ADULTS 

2162
01:31:08,280 --> 01:31:12,720
AND WE HAVE AEIGHT OF PROGRAMS 

2163
01:31:12,720 --> 01:31:14,560
THAT TARGET THE PROGRAM AND WE 

2164
01:31:14,560 --> 01:31:17,280
HAVE SECTION 202.

2165
01:31:17,280 --> 01:31:20,000
AND SUPPORTIVE HOUSING FOR OLDER

2166
01:31:20,000 --> 01:31:21,320
ADULTS, THERE ARE A LOT OF OTHER

2167
01:31:21,320 --> 01:31:26,520
SERVICES THAT CAN BE PROVIDED.

2168
01:31:26,520 --> 01:31:28,360
WE HAVE SERVICE COORDINATORS AND

2169
01:31:28,360 --> 01:31:30,120
ACROSS-HUD PROGRAMS WE SERVE 

2170
01:31:30,120 --> 01:31:31,520
OLDER ADULTS WITH DISABILITIES 

2171
01:31:31,520 --> 01:31:35,320
AND OLDER ADULTS IN GENERAL AS 

2172
01:31:35,320 --> 01:31:37,440
IT WAS SHOWN ONE OF THE SLIDES.

2173
01:31:37,440 --> 01:31:39,360
SO IT ISN'T A POPULATION THAT IS

2174
01:31:39,360 --> 01:31:43,160
NOT SERVED BUT WE HAVE SPECIFIC 

2175
01:31:43,160 --> 01:31:45,440
PROGRAMS BY STATUTE TARGETED TO 

2176
01:31:45,440 --> 01:31:48,240
OLDER ADULTS AND WE HAVE 

2177
01:31:48,240 --> 01:31:49,720
SPECIFIC PROGRAMS BY STATUTE 

2178
01:31:49,720 --> 01:31:59,400
TARGETED TO NON-WHAT WE CALL 

2179
01:31:59,400 --> 01:32:03,680
NON-PEOPLE WITH DISABILITIES WHO

2180
01:32:03,680 --> 01:32:11,520
NEED SUPPORTIVE HOUSING.

2181
01:32:11,520 --> 01:32:13,560
>> THANK YOU FOR THAT.

2182
01:32:13,560 --> 01:32:17,680
JENNY AND YETTA AND WE'LL COME 

2183
01:32:17,680 --> 01:32:20,040
TO A CLOSE IN TIME FOR OUR 

2184
01:32:20,040 --> 01:32:21,200
BREAK.

2185
01:32:21,200 --> 01:32:25,160
>> JENNY REQUESTED I READ THE 

2186
01:32:25,160 --> 01:32:26,160
COMMENT.

2187
01:32:26,160 --> 01:32:27,720
THANK YOU FOR READING THE 

2188
01:32:27,720 --> 01:32:28,000
QUESTION.

2189
01:32:28,000 --> 01:32:30,280
MY QUESTION IS RELATED TO 

2190
01:32:30,280 --> 01:32:31,560
DISPLACEMENT DUE TO NATURAL 

2191
01:32:31,560 --> 01:32:40,000
DISASTER EVENTS SUCH AS TORNADOS

2192
01:32:40,000 --> 01:32:41,360
AND HURRICANES AND ARE THERE 

2193
01:32:41,360 --> 01:32:44,720
TOOLS IN PLACE FOR FAMILIES AND 

2194
01:32:44,720 --> 01:32:46,120
AUTISTIC INDIVIDUALS DISPLACED 

2195
01:32:46,120 --> 01:32:47,320
DUE TO THESE EVENTS?

2196
01:32:47,320 --> 01:32:50,200
SHARE ANY INFORMATION YOUR TEAMS

2197
01:32:50,200 --> 01:32:52,920
HAVE ON FOLLOWING UP WITH 

2198
01:32:52,920 --> 01:32:55,160
AUTISTIC PEOPLE TO TRANSITION TO

2199
01:32:55,160 --> 01:32:56,880
TEMPORARY HOUSING DURING THESE 

2200
01:32:56,880 --> 01:32:59,560
EVENTS AND THEREAFTER INTO MORE 

2201
01:32:59,560 --> 01:32:59,960
PERMANENT HOUSING.

2202
01:32:59,960 --> 01:33:05,360
UP IN 

2203
01:33:05,360 --> 01:33:07,560
>> I CAN START, DR. SOUZA.

2204
01:33:07,560 --> 01:33:14,560
THANK YOU FOR THE QUESTION, 

2205
01:33:14,560 --> 01:33:15,360
JENNY.

2206
01:33:15,360 --> 01:33:16,960
THE ASSISTIVE TECHNOLOGY 

2207
01:33:16,960 --> 01:33:18,320
PROGRAMS WORK CLOSELY WITH THE 

2208
01:33:18,320 --> 01:33:20,960
EMERGENCY MANAGEMENT AGENCIES TO

2209
01:33:20,960 --> 01:33:22,960
HELP PROVIDE TRAINING AND 

2210
01:33:22,960 --> 01:33:24,040
TECHNICAL ASSISTANCE TO THE 

2211
01:33:24,040 --> 01:33:25,600
STAFF THAT WORK IN THOSE 

2212
01:33:25,600 --> 01:33:25,880
PROGRAMS.

2213
01:33:25,880 --> 01:33:28,120
WE KNOW THERE'S MORE WORK TO DO 

2214
01:33:28,120 --> 01:33:30,440
BUT TO BE ABLE TO BETTER 

2215
01:33:30,440 --> 01:33:32,160
INTERACT WITH PEOPLE WITH AUTISM

2216
01:33:32,160 --> 01:33:36,560
AND PROVIDE THE APPROPRIATE 

2217
01:33:36,560 --> 01:33:39,360
SUPPORTS AND WE CAN GET BACK TO 

2218
01:33:39,360 --> 01:33:42,000
DR. DANIELS WITH ADDITIONAL 

2219
01:33:42,000 --> 01:33:46,960
INFORMATION THAT WE USE IN THAT 

2220
01:33:46,960 --> 01:33:49,440
APPROACH AND I THINK YOUR OTHER 

2221
01:33:49,440 --> 01:33:52,000
QUESTION WAS ABOUT HELPING 

2222
01:33:52,000 --> 01:33:54,160
PEOPLE TRANSITION INTO HOUSING 

2223
01:33:54,160 --> 01:33:56,120
WHEN THEY ARE IN AN EMERGENCY 

2224
01:33:56,120 --> 01:33:59,520
AND I DON'T KNOW IF DR. SOUZA 

2225
01:33:59,520 --> 01:34:01,240
HAS ANYTHING TO MENTION BUT I 

2226
01:34:01,240 --> 01:34:03,160
KNOW THE AGING AND DISABILITY 

2227
01:34:03,160 --> 01:34:07,560
AGENCIES THAT ACL FUNDS AND OUR 

2228
01:34:07,560 --> 01:34:09,960
REGIONAL OFFICES AND STAFF ARE 

2229
01:34:09,960 --> 01:34:11,320
VERY ENGAGED IN RESPONDING TO 

2230
01:34:11,320 --> 01:34:13,960
EMERGENCIES AND TRYING TO ASSIST

2231
01:34:13,960 --> 01:34:15,960
PEOPLE TO GET SOME TEMPORARY 

2232
01:34:15,960 --> 01:34:18,160
HOUSING IF THEY'RE IMPACTED BY 

2233
01:34:18,160 --> 01:34:19,520
EMERGENCIES AND TEMPORARY 

2234
01:34:19,520 --> 01:34:22,000
SERVICES AND HELP SUPPORT THEM 

2235
01:34:22,000 --> 01:34:23,560
ON THE PATH BACK TO STABLE 

2236
01:34:23,560 --> 01:34:24,960
HOUSING AND SERVICES.

2237
01:34:24,960 --> 01:34:27,640
DR. SOUZA, I DON'T KNOW IF 

2238
01:34:27,640 --> 01:34:28,840
THERE'S ANYTHING MORE YOU MIGHT 

2239
01:34:28,840 --> 01:34:31,360
ADD FROM THE HUD PERSPECTIVE?

2240
01:34:31,360 --> 01:34:35,240
>> I'LL HAVE TO TALK TO MY 

2241
01:34:35,240 --> 01:34:38,360
COLLEAGUES AND PROVIDE -- I'M 

2242
01:34:38,360 --> 01:34:40,800
SURE THERE IS A LOT HUD DOES.

2243
01:34:40,800 --> 01:34:44,240
HUD IN CASES OF DISASTERS HAS 

2244
01:34:44,240 --> 01:34:49,160
THE CDBG DISASTER ASSISTANCE 

2245
01:34:49,160 --> 01:34:52,520
THAT IS AUTHORIZED BY CONGRESS 

2246
01:34:52,520 --> 01:34:55,560
WHENEVER THERE ARE SITUATIONS 

2247
01:34:55,560 --> 01:34:58,720
LIKE THAT AND HUD PROVIDES 

2248
01:34:58,720 --> 01:35:01,840
ASSISTANCE TO LOCAL GOVERNMENTS 

2249
01:35:01,840 --> 01:35:03,560
TO ADDRESS THE NEED FOR HOUSING 

2250
01:35:03,560 --> 01:35:10,920
ASSISTANCE AFTER A DISASTER AND 

2251
01:35:10,920 --> 01:35:11,960
THAT SYSTEM HAS RULES THAT 

2252
01:35:11,960 --> 01:35:15,560
ALLOWS THE FUNDING TO MOVE MORE 

2253
01:35:15,560 --> 01:35:15,800
QUICKLY.

2254
01:35:15,800 --> 01:35:18,000
BUT I'LL HAVE TO GO BACK TO MY 

2255
01:35:18,000 --> 01:35:19,880
COLLEAGUES AT FHO AND THE 

2256
01:35:19,880 --> 01:35:22,840
PROGRAM OFFICES.

2257
01:35:22,840 --> 01:35:28,840
I'M SURE WE HAVE TRAINING AND 

2258
01:35:28,840 --> 01:35:31,520
GUIDANCE TO HELP LOCAL AGENCIES 

2259
01:35:31,520 --> 01:35:35,080
THAT ADMINISTER HUD PROGRAMS TO 

2260
01:35:35,080 --> 01:35:38,240
ADDRESS THE NEEDS OF PEOPLE WITH

2261
01:35:38,240 --> 01:35:42,480
DISABILITIES AND IN THE AUTISM 

2262
01:35:42,480 --> 01:35:43,560
SPECTRUM DURING DISASTER 

2263
01:35:43,560 --> 01:35:47,360
EMERGENCY SITUATIONS.

2264
01:35:47,360 --> 01:35:51,360
I'LL GET BACK TO SUSAN WITH SOME

2265
01:35:51,360 --> 01:35:52,880
RESOURCES WE HAVE.

2266
01:35:52,880 --> 01:35:54,720
>> THANK YOU.

2267
01:35:54,720 --> 01:35:55,360
YETTA.

2268
01:35:55,360 --> 01:35:57,840
>> THANKS, JOSH AND THANKS TO 

2269
01:35:57,840 --> 01:35:59,280
ALL THE SPEAKERS TODAY.

2270
01:35:59,280 --> 01:36:01,520
NO ONE CAN DENY THERE'S A NUMBER

2271
01:36:01,520 --> 01:36:04,120
OF CHALLENGES AS IT RELATES TO 

2272
01:36:04,120 --> 01:36:05,160
THE AUTISM COMMUNITY AND HOUSING

2273
01:36:05,160 --> 01:36:07,040
HOWEVER, AS I LISTEN TO MS. 

2274
01:36:07,040 --> 01:36:08,440
ORLANDO, I WAS THINKING ABOUT 

2275
01:36:08,440 --> 01:36:11,560
THE INDIVIDUALS AND FAMILIES NOT

2276
01:36:11,560 --> 01:36:12,440
CONNECTED TO RESOURCES.

2277
01:36:12,440 --> 01:36:14,720
MY MIND IMMEDIATELY WENT TO THE 

2278
01:36:14,720 --> 01:36:16,920
FAMILIES SUPPORTING AUTISTIC 

2279
01:36:16,920 --> 01:36:21,120
ADULTS WHO MAY NOT HAVE BEEN 

2280
01:36:21,120 --> 01:36:21,360
DIAGNOSED.

2281
01:36:21,360 --> 01:36:22,440
THEIR FAMILIES SLIPPED THROUGH 

2282
01:36:22,440 --> 01:36:23,160
THE CRACKS.

2283
01:36:23,160 --> 01:36:25,320
NO ONE WAS THERE TO HELP AND 

2284
01:36:25,320 --> 01:36:27,440
GIVE DIAGNOSES IN THE FIRST 

2285
01:36:27,440 --> 01:36:29,520
PLACE WHICH IS CONTRIBUTING TO 

2286
01:36:29,520 --> 01:36:32,560
WHY THEY CAN'T GET RESOURCES AS 

2287
01:36:32,560 --> 01:36:32,760
ADULTS.

2288
01:36:32,760 --> 01:36:34,800
IF YOU HAVE RESOURCES, IF YOU 

2289
01:36:34,800 --> 01:36:38,440
HAD THE MONEY, FINE, YOU CAN GET

2290
01:36:38,440 --> 01:36:39,320
A DIAGNOSIS WITH DIFFERENT 

2291
01:36:39,320 --> 01:36:41,200
CIRCUMSTANCES THOUGH IT SHOULD 

2292
01:36:41,200 --> 01:36:42,480
NOT BE BUT THAT'S UNFORTUNATELY 

2293
01:36:42,480 --> 01:36:52,720
HOW THESE THINGS GO.

2294
01:36:52,720 --> 01:36:54,160
I APPRECIATE HER COMMENT AND 

2295
01:36:54,160 --> 01:36:55,760
TOOL KIT FOR THE PROVIDERS AND 

2296
01:36:55,760 --> 01:36:58,360
REALLY MORE WORK NEEDS TO BE 

2297
01:36:58,360 --> 01:37:01,360
DONE TO TRAIN AND EDUCATE 

2298
01:37:01,360 --> 01:37:03,360
PROVIDERS WHO SERVE THOSE OFTEN 

2299
01:37:03,360 --> 01:37:03,720
MARGINALIZED.

2300
01:37:03,720 --> 01:37:04,960
WHEN WE THINK OF DOING RESEARCH 

2301
01:37:04,960 --> 01:37:06,720
AND WHO ARE WE DOING THE 

2302
01:37:06,720 --> 01:37:09,200
RESEARCH ON WE CAN TALK ABOUT 

2303
01:37:09,200 --> 01:37:10,880
THE SPECIFIC AGENCIES BUT I 

2304
01:37:10,880 --> 01:37:16,440
THINK OFTEN TIMES WE DON'T 

2305
01:37:16,440 --> 01:37:19,560
NECESSARILY THINK ABOUT HOMELESS

2306
01:37:19,560 --> 01:37:23,600
POPULATION OR FAMILIES WHO 

2307
01:37:23,600 --> 01:37:27,560
EXPERIENCE ABUSE.

2308
01:37:27,560 --> 01:37:33,560
AROUND AS COVID HAS COME UP AND 

2309
01:37:33,560 --> 01:37:36,080
PEOPLE WHO WERE MANDATORY 

2310
01:37:36,080 --> 01:37:37,120
REPORTERS WHO SAY THERE'S GOING 

2311
01:37:37,120 --> 01:37:38,840
ON IN SPECIFIC HOUSEHOLDS WE'RE 

2312
01:37:38,840 --> 01:37:40,560
NOT NECESSARILY REACHING THE 

2313
01:37:40,560 --> 01:37:41,720
INDIVIDUALS AND FAMILIES.

2314
01:37:41,720 --> 01:37:46,960
WHO KNOWS WHAT THE OUTCOME WILL 

2315
01:37:46,960 --> 01:37:51,400
BE AFTER COVID BUT I WANT TO SAY

2316
01:37:51,400 --> 01:37:53,560
THE WORK I'M DOING IN D.C. FROM 

2317
01:37:53,560 --> 01:37:55,360
THE D.C. SERVICE AND FAMILY 

2318
01:37:55,360 --> 01:37:56,880
AGENCY AND WE HAVE SOMETHING 

2319
01:37:56,880 --> 01:37:59,480
CALLED FAMILY SUCCESS CENTERS IN

2320
01:37:59,480 --> 01:38:01,960
WARDS 7 AND 8 THAT SERVE 

2321
01:38:01,960 --> 01:38:04,920
FAMILIES THAT ARE LOWER 

2322
01:38:04,920 --> 01:38:05,760
RESOURCED AND THEY ALSO HAVE AN 

2323
01:38:05,760 --> 01:38:10,960
INTEREST IN AUTISM.

2324
01:38:10,960 --> 01:38:12,240
THERE IS A NEED FOR AUTISM 

2325
01:38:12,240 --> 01:38:14,720
KNOWLEDGE AND TRAINING AND WE 

2326
01:38:14,720 --> 01:38:20,480
NEED TO THINK MORE STRATEGICALLY

2327
01:38:20,480 --> 01:38:28,040
HOW TO REACH OUT TO UPLIFT THE 

2328
01:38:28,040 --> 01:38:29,120
COMMUNITY AS A WHOLE AND THANK 

2329
01:38:29,120 --> 01:38:31,760
YOU FOR ALLOWING ME TO SHARE MY 

2330
01:38:31,760 --> 01:38:39,320
COMMENTS.

2331
01:38:39,320 --> 01:38:39,720
>> THANK YOU.

2332
01:38:39,720 --> 01:38:41,600
WE APPRECIATE THE ACTIVE 

2333
01:38:41,600 --> 01:38:44,080
CONVERSATION BETWEEN THE 

2334
01:38:44,080 --> 01:38:47,320
PRESENTERS AND THE COMMUNITY AND

2335
01:38:47,320 --> 01:38:49,080
WE APPRECIATE FOR THE PUBLIC TO 

2336
01:38:49,080 --> 01:38:50,000
HEAR ABOUT THE PROGRAMS.

2337
01:38:50,000 --> 01:38:54,720
CLEARLY WE HAVE A LOT OF WORK TO

2338
01:38:54,720 --> 01:39:02,280
DO BUT WE ALSO THAT'S AN 

2339
01:39:02,280 --> 01:39:03,360
EXCELLENT DEMONSTRATION OF WHAT 

2340
01:39:03,360 --> 01:39:04,640
THE IACC IS ABOUT AND WE'RE 

2341
01:39:04,640 --> 01:39:06,120
RIGHT ON TIME TO ALLOW US TO 

2342
01:39:06,120 --> 01:39:08,000
TAKE A 15-MINUTE BREAK

2343
01:39:08,000 --> 01:39:09,760
WE'RE ABOUT TO START A 

2344
01:39:09,760 --> 01:39:11,160
SIGNIFICANT SECTION OF OUR 

2345
01:39:11,160 --> 01:39:13,040
MEETING WHERE WE'RE GOING TO 

2346
01:39:13,040 --> 01:39:15,640
HAVE LOTS OF DISCUSSIONS AMONGST

2347
01:39:15,640 --> 01:39:17,640
THE IACC MEMBERS.

2348
01:39:17,640 --> 01:39:19,480
SINCE OUR LAST MEETING I'VE BEEN

2349
01:39:19,480 --> 01:39:25,000
GETTING LOTS OF QUESTIONS AND 

2350
01:39:25,000 --> 01:39:27,240
COMMENTS ABOUT THE ROLE OF 

2351
01:39:27,240 --> 01:39:28,600
VARIOUS IACC MEMBERS AND ASKING 

2352
01:39:28,600 --> 01:39:29,520
OUR CHARGE AND WHAT'S THE 

2353
01:39:29,520 --> 01:39:32,560
PURPOSE OF THE MEETING AND A 

2354
01:39:32,560 --> 01:39:35,200
REALIZED IT'S SOMETHING WE 

2355
01:39:35,200 --> 01:39:36,400
SHOULD PROBABLY SPENT A LITTLE 

2356
01:39:36,400 --> 01:39:38,600
BIT OF TIME THINKING ABOUT.

2357
01:39:38,600 --> 01:39:41,360
I WANTED TO REITERATE AND 

2358
01:39:41,360 --> 01:39:44,680
CLARIFY WHAT WE'RE ALL TRYING TO

2359
01:39:44,680 --> 01:39:45,160
DO HERE.

2360
01:39:45,160 --> 01:39:50,120
THAT WILL SERVE AS A GOOD 

2361
01:39:50,120 --> 01:39:51,640
STARTING POINT TO THEN THE NEXT 

2362
01:39:51,640 --> 01:39:52,600
SECTION OF OUR MEETING THAT'S 

2363
01:39:52,600 --> 01:39:54,200
GOING TO BE ABOUT BUSINESS WE 

2364
01:39:54,200 --> 01:39:55,200
NEED TO ATTEND TO THE STRATEGIC 

2365
01:39:55,200 --> 01:40:00,000
PLAN AND THE SUMMARY OF ADVANCES

2366
01:40:00,000 --> 01:40:01,200
AND LEAD INTO TOMORROW'S MEETING

2367
01:40:01,200 --> 01:40:03,800
WHERE WE'LL HAVE A PANEL 

2368
01:40:03,800 --> 01:40:04,400
DISCUSSION ON COMMUNICATION 

2369
01:40:04,400 --> 01:40:07,160
BECAUSE WHAT I WANT TO TALK TO 

2370
01:40:07,160 --> 01:40:08,600
YOU ABOUT IS THE COMMUNICATION 

2371
01:40:08,600 --> 01:40:18,360
AMONGST ALL OF US ON THE IACC.

2372
01:40:18,360 --> 01:40:20,120
CONGRESS MANDATED SPECIFIC 

2373
01:40:20,120 --> 01:40:21,040
DUTIES.

2374
01:40:21,040 --> 01:40:26,280
WE'RE CHARGED WITH MONITORING 

2375
01:40:26,280 --> 01:40:28,880
WILL HAVE AUTISM RESEARCH AND 

2376
01:40:28,880 --> 01:40:29,800
RESEARCH AND MAKING 

2377
01:40:29,800 --> 01:40:30,640
RECOMMENDATIONS TO IN THE SECTOR

2378
01:40:30,640 --> 01:40:35,200
OF HEALTH AND HUMAN SERVICES 

2379
01:40:35,200 --> 01:40:38,360
REGARDING ACTIVITIES WRIT LARGE 

2380
01:40:38,360 --> 01:40:39,120
BEYOND JUST RESEARCH.

2381
01:40:39,120 --> 01:40:40,960
MUCH AS WE DID IN THE LAST 

2382
01:40:40,960 --> 01:40:44,400
SEGMENT WHERE WE TALKED ABOUT 

2383
01:40:44,400 --> 01:40:46,600
HOUSING POLICY AND THINGS THAT 

2384
01:40:46,600 --> 01:40:50,280
THE HOUSING POLICY FOLKS SHOULD 

2385
01:40:50,280 --> 01:40:51,080
TAKE INTO ACCOUNT WHEN 

2386
01:40:51,080 --> 01:40:52,960
CONSIDERING INDIVIDUALS AND 

2387
01:40:52,960 --> 01:40:57,080
FAMILIES WITH AUTISM.

2388
01:40:57,080 --> 01:41:01,400
IN PARTICULAR THE STRATEGIC PLAN

2389
01:41:01,400 --> 01:41:03,000
FOR AUTISM RESEARCH AND RELEVANT

2390
01:41:03,000 --> 01:41:04,760
POLICIES IS ONE OF OUR PRIMARY 

2391
01:41:04,760 --> 01:41:06,880
MECHANISMS TO MAKE 

2392
01:41:06,880 --> 01:41:08,280
RECOMMENDATIONS TO HHS AND TO 

2393
01:41:08,280 --> 01:41:09,080
OTHER FEDERAL AGENCY.

2394
01:41:09,080 --> 01:41:11,000
MUCH OF OUR TEAM DURING THIS 

2395
01:41:11,000 --> 01:41:12,480
MEETING AND OTHERS WILL BE 

2396
01:41:12,480 --> 01:41:15,400
DEVOTED TO COMPLETING THESE 

2397
01:41:15,400 --> 01:41:17,520
REPORTS.

2398
01:41:17,520 --> 01:41:19,000
AN DITION TO THE AUTISM CARES 

2399
01:41:19,000 --> 01:41:20,720
ACT THERE'S OTHER LAWS THAT 

2400
01:41:20,720 --> 01:41:23,200
GOVERN OR CONDUCT INCLUDING THE 

2401
01:41:23,200 --> 01:41:24,040
FEDERAL ADVISORY COMMITTEE ACT 

2402
01:41:24,040 --> 01:41:25,520
OR FACA.

2403
01:41:25,520 --> 01:41:30,040
THESE LAWS ARE MEANT TO ENSURE 

2404
01:41:30,040 --> 01:41:32,640
IACC ACTIVITY OBJECTIVE, 

2405
01:41:32,640 --> 01:41:35,960
TRANSPARENT AND ACCESSIBLE TO 

2406
01:41:35,960 --> 01:41:36,240
ALL.

2407
01:41:36,240 --> 01:41:38,440
IT'S MY RESPONSIBILITY AS CHAIR 

2408
01:41:38,440 --> 01:41:40,960
OF THE COMMITTEE AND 

2409
01:41:40,960 --> 01:41:42,600
DR. DANIELS' RESPONSIBILITY AS 

2410
01:41:42,600 --> 01:41:43,920
THE EXECUTIVE SECRETARY TO GUIDE

2411
01:41:43,920 --> 01:41:49,200
THE IACC IN MEETING THESE 

2412
01:41:49,200 --> 01:41:50,400
OBLIGATIONS AND A RESPONSE ACT 

2413
01:41:50,400 --> 01:41:52,440
BOTH OF US TAKE SERIOUSLY.

2414
01:41:52,440 --> 01:41:54,760
WE ALSO KNOW YOU ALL TAKE YOUR 

2415
01:41:54,760 --> 01:41:55,880
RESPONSIBILITIES VERY SERIOUSLY 

2416
01:41:55,880 --> 01:41:58,400
AND WE GREATLY APPRECIATE EACH 

2417
01:41:58,400 --> 01:41:59,960
AND EVERY ONE OF YOU ON THE 

2418
01:41:59,960 --> 01:42:03,080
COMMITTEE FOR VOLUNTEERING YOUR 

2419
01:42:03,080 --> 01:42:06,400
TIME TO SERVE.

2420
01:42:06,400 --> 01:42:07,200
WE UNDERSTAND.

2421
01:42:07,200 --> 01:42:08,360
IT'S A SUBSTANTIAL COMMITMENT IN

2422
01:42:08,360 --> 01:42:10,560
TIME AND ENERGY AND HAVE TO 

2423
01:42:10,560 --> 01:42:13,120
ACKNOWLEDGE IN RISK BEING OUT 

2424
01:42:13,120 --> 01:42:14,120
HERE TALKING ABOUT ISSUES OF 

2425
01:42:14,120 --> 01:42:14,640
IMPORTANCE TO THE AUTISM 

2426
01:42:14,640 --> 01:42:18,200
COMMUNITY.

2427
01:42:18,200 --> 01:42:24,280
WE WANT TO MAKE SURE IT'S A 

2428
01:42:24,280 --> 01:42:35,200
WORTHWHILE EXPERIENCE FOUR AND 

2429
01:42:35,200 --> 01:42:38,000
AND WE'RE MAKING ADJUSTMENTS TO 

2430
01:42:38,000 --> 01:42:43,000
OPTIMIZE THE EXPERIENCE AND TO 

2431
01:42:43,000 --> 01:42:55,200
EVERYONE THEIR FULL VOICE.

2432
01:42:55,200 --> 01:42:58,080
AND IT'S FAMILIAR FOR US IN THE 

2433
01:42:58,080 --> 01:42:58,720
PANDEMIC ENVIRONMENT.

2434
01:42:58,720 --> 01:43:01,000
ANOTHER ADJUSTMENT, THIS IS IT 

2435
01:43:01,000 --> 01:43:03,080
THE LARGEST COMMITTEE WE'VE EVER

2436
01:43:03,080 --> 01:43:03,240
HAD.

2437
01:43:03,240 --> 01:43:05,120
WE'VE HAD IT ADAPT TO 

2438
01:43:05,120 --> 01:43:06,880
ACCOMMODATE THAT BUT IT'S NOT 

2439
01:43:06,880 --> 01:43:11,880
JUST TECHNOLOGY AND IT'S NOT 

2440
01:43:11,880 --> 01:43:15,520
JUST SIZE THAT SETS THIS GROUP 

2441
01:43:15,520 --> 01:43:17,320
APART FROM PREVIOUS ITERATIONS 

2442
01:43:17,320 --> 01:43:18,240
FROM THE IACC.

2443
01:43:18,240 --> 01:43:23,800
WE MADE EFFORTS TO BROADEN THE 

2444
01:43:23,800 --> 01:43:24,600
REPRESENTATION ON THE COMMITTEE 

2445
01:43:24,600 --> 01:43:25,800
WITH ADDITIONAL FEDERAL AGENCIES

2446
01:43:25,800 --> 01:43:27,080
AN ADDITIONAL MEMBERS INTEREST 

2447
01:43:27,080 --> 01:43:39,840
THE AUTISM COMMUNITY WRIT LARGE.

2448
01:43:39,840 --> 01:43:45,040
AND THE ADVOCATES REFLECT A 

2449
01:43:45,040 --> 01:43:46,400
BROADER PART OF THE SPECTRUM 

2450
01:43:46,400 --> 01:43:48,200
THAT'S AUTISM AND YOU ALL 

2451
01:43:48,200 --> 01:43:49,400
MEMBERS, RESEARCH MEMBERS ALL 

2452
01:43:49,400 --> 01:43:51,040
THE MEMBERS OF OUR COMMITTEE 

2453
01:43:51,040 --> 01:43:53,520
WERE SELECTED BASED UPON THE 

2454
01:43:53,520 --> 01:43:57,040
LIVED EXPERIENCE AND EXPERTISE 

2455
01:43:57,040 --> 01:44:02,400
THAT YOU BRING TO THE TABLE.

2456
01:44:02,400 --> 01:44:04,600
IS THE COMMITTEE IS MEANT TO 

2457
01:44:04,600 --> 01:44:06,200
BRING TOGETHER ADULTS AND 

2458
01:44:06,200 --> 01:44:08,920
LEADERS OF RESEARCH, ADVOCACY 

2459
01:44:08,920 --> 01:44:09,840
AND SERVICE ORGANIZATIONS AS 

2460
01:44:09,840 --> 01:44:11,720
WELL AS OFFICIALS FROM THE 

2461
01:44:11,720 --> 01:44:15,000
FEDERAL AGENCIES INVOLVED IN 

2462
01:44:15,000 --> 01:44:19,120
AUTISM RESEARCH AND DISABILITY 

2463
01:44:19,120 --> 01:44:21,840
SERVICES.

2464
01:44:21,840 --> 01:44:25,520
AND WE EACH SERVE MORE THAN ONE 

2465
01:44:25,520 --> 01:44:25,720
ROLE.

2466
01:44:25,720 --> 01:44:27,000
MANY ARE PERSONS ON THE AUTISM 

2467
01:44:27,000 --> 01:44:30,200
SPECTRUM OR THE PARENT OF A 

2468
01:44:30,200 --> 01:44:34,840
CHILD ON THE AUTISM SPECTRUM 

2469
01:44:34,840 --> 01:44:36,480
AND/OR AN AGENCY HEAD OR 

2470
01:44:36,480 --> 01:44:39,240
RESEARCHER OR AUTISTIC ADULT OR 

2471
01:44:39,240 --> 01:44:40,480
PARENT.

2472
01:44:40,480 --> 01:44:41,680
IT'S THE ROLE AND CHARGE FOR 

2473
01:44:41,680 --> 01:44:43,200
EACH OF US TO BRING OUR DIVERSE 

2474
01:44:43,200 --> 01:44:45,040
POINTS OF VIEW AND EXPERTISE TO 

2475
01:44:45,040 --> 01:44:47,960
THIS TABLE.

2476
01:44:47,960 --> 01:44:50,080
AND TO DO TWO VERY IMPORTANT 

2477
01:44:50,080 --> 01:44:50,480
THINGS.

2478
01:44:50,480 --> 01:44:55,160
SHARE FROM OUR OWN EXPERIENCE 

2479
01:44:55,160 --> 01:44:56,200
AND PERSPECTIVES AND 

2480
01:44:56,200 --> 01:44:57,640
THOUGHTFULLY LISTEN TO OTHERS 

2481
01:44:57,640 --> 01:44:58,840
INCLUDING COMMITTEE MEMBERS, 

2482
01:44:58,840 --> 01:45:03,040
SPEAKERS AND MEMBERS OF THE 

2483
01:45:03,040 --> 01:45:08,800
PUBLIC WHO SHARE THEIR COMMENTS.

2484
01:45:08,800 --> 01:45:10,240
AFTER WE'VE SHARED AND LISTENED 

2485
01:45:10,240 --> 01:45:12,480
IT'S OUR JOB TOGETHER TO LOOK 

2486
01:45:12,480 --> 01:45:14,640
FOR COMMON GROUND WHERE ACTION 

2487
01:45:14,640 --> 01:45:18,000
MAY BE POSSIBLE AND TO COME TO 

2488
01:45:18,000 --> 01:45:19,400
CONSENSUS ON RECOMMENDATIONS AND

2489
01:45:19,400 --> 01:45:21,400
ADVICE TO THE SECRETARY SO THE 

2490
01:45:21,400 --> 01:45:23,600
ACTIONS CAN BE TAKEN OUT.

2491
01:45:23,600 --> 01:45:25,080
IF TOO MUCH TIME IS SPENT 

2492
01:45:25,080 --> 01:45:26,680
SHARING AND TOO LITTLE LISTENING

2493
01:45:26,680 --> 01:45:28,040
OR LEARNING THAN OUR FOCUS 

2494
01:45:28,040 --> 01:45:29,320
BECOMES OUT OF BALANCE AND THIS 

2495
01:45:29,320 --> 01:45:31,200
CAN LEAD TO POLARIZATION AND 

2496
01:45:31,200 --> 01:45:34,200
LOWER THE PROBABILITY OF FINDING

2497
01:45:34,200 --> 01:45:37,360
THE COMMON GROUND AND MOVING 

2498
01:45:37,360 --> 01:45:37,640
FORWARD.

2499
01:45:37,640 --> 01:45:38,720
COMING TO CONSENSUS WILL REQUIRE

2500
01:45:38,720 --> 01:45:40,080
US TO BE WILLING TO UNDERSTAND 

2501
01:45:40,080 --> 01:45:41,840
THE PERSPECTIVES OF OTHERS, TO 

2502
01:45:41,840 --> 01:45:43,800
STEP AWAY FROM THE POLARIZED 

2503
01:45:43,800 --> 01:45:47,200
EDGES OF AN ISSUE AND MOVE 

2504
01:45:47,200 --> 01:45:47,760
TOWARDS THE MIDDLE TO MAKE 

2505
01:45:47,760 --> 01:45:52,400
PROGRESS.

2506
01:45:52,400 --> 01:45:54,200
I WANT TO ENSURE EVERYONE ON THE

2507
01:45:54,200 --> 01:45:55,760
COMMITTEE AND PUBLIC COMMENTERS,

2508
01:45:55,760 --> 01:45:58,800
I WANT TO MAKE SURE THEY FEEL 

2509
01:45:58,800 --> 01:45:59,520
COMFORTABLE SHARING EXPERIENCES 

2510
01:45:59,520 --> 01:46:00,320
DURING THE MEETINGS.

2511
01:46:00,320 --> 01:46:02,680
WE HEARD OF THE CHALLENGES THAT 

2512
01:46:02,680 --> 01:46:03,400
PEOPLE IN THE AUTISM COMMUNITY 

2513
01:46:03,400 --> 01:46:09,000
ARE FACING IN THEIR DAY TO DAY 

2514
01:46:09,000 --> 01:46:11,160
LIVES WHETHER THAT'S MANAGING 

2515
01:46:11,160 --> 01:46:14,120
THE AFFECTS OF A CO-OCCURRING 

2516
01:46:14,120 --> 01:46:16,200
CONDITION OR FOR THEMSELVES OR A

2517
01:46:16,200 --> 01:46:16,840
FAMILY MEMBER.

2518
01:46:16,840 --> 01:46:19,160
GIVEN THESE ISSUES, IT IS 

2519
01:46:19,160 --> 01:46:21,920
INEVITABLE OUR DISCUSSIONS WILL 

2520
01:46:21,920 --> 01:46:24,800
GET EMOTIONAL AND STRESSFUL FROM

2521
01:46:24,800 --> 01:46:26,800
TIME TO TIME.

2522
01:46:26,800 --> 01:46:27,920
IT IS INEVITABLE YOU MAY 

2523
01:46:27,920 --> 01:46:29,200
STRONGLY DISAGREE WITH COMMON'S 

2524
01:46:29,200 --> 01:46:30,480
COMMENTS FROM TIME TO TIME GIVEN

2525
01:46:30,480 --> 01:46:32,200
THE RANGE OF OPINIONS AND 

2526
01:46:32,200 --> 01:46:35,200
EXPERIENCES REPRESENTED HERE.

2527
01:46:35,200 --> 01:46:36,600
IT IS OUR JOB AS COMMITTEE 

2528
01:46:36,600 --> 01:46:41,200
MEMBERS TO LISTEN AND TO TAKE 

2529
01:46:41,200 --> 01:46:42,960
ALL COMMENTS INTO CONSIDERATION.

2530
01:46:42,960 --> 01:46:45,080
IMPORTANTLY, NORD TO LISTEN WE 

2531
01:46:45,080 --> 01:46:47,040
CANNOT MAKE ASSUMPTIONS ABOUT 

2532
01:46:47,040 --> 01:46:48,040
ANOTHER PERSON'S EXPERIENCE.

2533
01:46:48,040 --> 01:46:52,080
WE MUST REALIZE THAT WE ALL FEEL

2534
01:46:52,080 --> 01:46:54,880
MANY OF THE SAME THING, 

2535
01:46:54,880 --> 01:46:57,000
FRUSTRATION, ANGER, PASSION 

2536
01:46:57,000 --> 01:47:03,040
ABOUT OUR VIEWS AND INDEED 

2537
01:47:03,040 --> 01:47:04,480
NERVOUSNESS ABOUT THE 

2538
01:47:04,480 --> 01:47:04,800
EXPERIENCE.

2539
01:47:04,800 --> 01:47:06,560
WE WANT TO HONOR EACH PERSON'S 

2540
01:47:06,560 --> 01:47:07,880
WILLINGNESS TO SHARE AND TREAT 

2541
01:47:07,880 --> 01:47:08,960
THAT WILLINGNESS WITH RESPECT.

2542
01:47:08,960 --> 01:47:11,200
WHEN IT'S YOUR TURN TO SHARE 

2543
01:47:11,200 --> 01:47:13,520
USING A RESPECTFUL TONE IS 

2544
01:47:13,520 --> 01:47:15,640
HELPFUL TO THOSE LISTENING EVEN 

2545
01:47:15,640 --> 01:47:18,720
WHEN EXPRESSING ISSUES WHERE WE 

2546
01:47:18,720 --> 01:47:19,160
FEEL STRONGLY.

2547
01:47:19,160 --> 01:47:22,560
WHEN IT'S YOUR TURN TO LISTEN, 

2548
01:47:22,560 --> 01:47:24,560
PLEASE REMEMBER WE ARE ALL HERE 

2549
01:47:24,560 --> 01:47:27,000
FOR THE SAME REASON.

2550
01:47:27,000 --> 01:47:29,000
WE ALL CARE DEEPLY ABOUT 

2551
01:47:29,000 --> 01:47:29,960
IMPROVING THE LIVES OF 

2552
01:47:29,960 --> 01:47:35,200
INDIVIDUALS WITH AUTISM, 

2553
01:47:35,200 --> 01:47:40,720
FAMILIES AND COMMUNITIES.

2554
01:47:40,720 --> 01:47:43,640
THIS IS TRUE FOR COMMITTEE 

2555
01:47:43,640 --> 01:47:45,280
MEMBERS AND WE ALL DIFFERENT 

2556
01:47:45,280 --> 01:47:47,000
ABILITIES AND STYLES AND MAY NOT

2557
01:47:47,000 --> 01:47:53,880
ALWAYS KNOW HOW TO SAY THINGS IN

2558
01:47:53,880 --> 01:47:56,600
A WAY OTHER CAN APPRECIATE SO 

2559
01:47:56,600 --> 01:47:59,520
REMEMBER WHEN YOU LISTEN, 

2560
01:47:59,520 --> 01:48:01,160
REMEMBER WHEN YOU DISAGREE WITH 

2561
01:48:01,160 --> 01:48:02,160
WHAT'S BEING SAID THE PERSON IS 

2562
01:48:02,160 --> 01:48:03,200
ON YOUR SIDE.

2563
01:48:03,200 --> 01:48:05,480
THE COMMENTER, SPEAKER, SHARER 

2564
01:48:05,480 --> 01:48:11,040
IS ON THE SAME SIDE OF TRYING TO

2565
01:48:11,040 --> 01:48:19,680
HELP SO HOPEFULLY THIS WILL HELP

2566
01:48:19,680 --> 01:48:23,000
NOT GET CAUGHT UP IN CONTROVERSY

2567
01:48:23,000 --> 01:48:24,800
BUT WITH A GREATER 

2568
01:48:24,800 --> 01:48:26,000
REPRESENTATION FROM BE AN AUTISM

2569
01:48:26,000 --> 01:48:28,120
AROUND OUR TABLE IT MAY BE 

2570
01:48:28,120 --> 01:48:31,200
CHALLENGING FOR ALL OF US TO 

2571
01:48:31,200 --> 01:48:39,880
UNDERSTAND AND BE UNDERSTOOD.

2572
01:48:39,880 --> 01:48:42,800
SPEAKING SLOW LANGUAGE AND USING

2573
01:48:42,800 --> 01:48:44,000
SENSITIVE LANGUAGE AVOIDING 

2574
01:48:44,000 --> 01:48:47,200
TERMS THAT MAY DEMEAN OTHERS.

2575
01:48:47,200 --> 01:48:50,760
WE MAY NOT ALWAYS KNOW WHAT 

2576
01:48:50,760 --> 01:48:54,000
ANOTHER PERSON TAKES AS 

2577
01:48:54,000 --> 01:48:57,080
DEMEANING SO IF SOMEONE FINDS 

2578
01:48:57,080 --> 01:49:00,280
LANGUAGE DEMEANING, SPEAK UP AND

2579
01:49:00,280 --> 01:49:03,040
REMEMBER WE'RE NOT TRYING TO 

2580
01:49:03,040 --> 01:49:05,040
INTENTIONALLY EXCLUDE OR DEMEAN 

2581
01:49:05,040 --> 01:49:06,240
ANYTHING SO SIMPLY ASKING FOR 

2582
01:49:06,240 --> 01:49:11,080
SOMEONE TO REPEAT THEMSELVES OR 

2583
01:49:11,080 --> 01:49:12,800
SPEAK SLOWER OR USE DIFFERENT 

2584
01:49:12,800 --> 01:49:13,800
LANGUAGE WILL HELP US ALL 

2585
01:49:13,800 --> 01:49:14,800
UNDERSTOOD EACH OTHER BETTER AND

2586
01:49:14,800 --> 01:49:15,840
WORK BETTER TOGETHER.

2587
01:49:15,840 --> 01:49:17,320
IT'S MY HOPE MOVING FORWARD WE 

2588
01:49:17,320 --> 01:49:20,760
CAN KEEP ALL THESE THINGS IN 

2589
01:49:20,760 --> 01:49:22,400
MIND EVEN THOUGH WE'RE 

2590
01:49:22,400 --> 01:49:23,000
INDIVIDUALS WITH DIFFERENT 

2591
01:49:23,000 --> 01:49:24,960
POINTS OF VIEW AND THE GOAL IS 

2592
01:49:24,960 --> 01:49:27,120
TO CREATE A COLLECTIVE VOICE.

2593
01:49:27,120 --> 01:49:28,600
ABOVE ALL ELSE, IT'S OUR 

2594
01:49:28,600 --> 01:49:30,400
OBLIGATION TO LISTEN TO OTHERS 

2595
01:49:30,400 --> 01:49:31,600
AS THEY SHARE THEIR EXPERIENCES 

2596
01:49:31,600 --> 01:49:33,040
AND TO LEARN FROM EACH OTHER.

2597
01:49:33,040 --> 01:49:35,600
WE'RE ALL STILL LEARNING AND I 

2598
01:49:35,600 --> 01:49:37,440
WANT TO EMPHASIZE HOW MUCH I 

2599
01:49:37,440 --> 01:49:39,200
VALUE THIS OPPORTUNITY TO LEARN 

2600
01:49:39,200 --> 01:49:44,520
FROM ALL OF YOU.

2601
01:49:44,520 --> 01:49:45,920
WITH THAT INTRODUCTION, I'M 

2602
01:49:45,920 --> 01:49:47,600
GOING TO TURN THINGS OVER TO 

2603
01:49:47,600 --> 01:49:49,800
SUSAN FOR THE NATIONAL AUTISM 

2604
01:49:49,800 --> 01:49:51,480
COORDINATOR UPDATE AND SHE'LL 

2605
01:49:51,480 --> 01:49:55,200
FOLLOW WITH THE IACC COMMITTEE 

2606
01:49:55,200 --> 01:49:55,440
BUSINESS.

2607
01:49:55,440 --> 01:49:57,080
THANKS FOR YOUR ATTENTION.

2608
01:49:57,080 --> 01:50:13,880
>> THANK YOU, JOSH.

2609
01:50:13,880 --> 01:50:15,400
>> I'M READY TO GIVE YOU THE 

2610
01:50:15,400 --> 01:50:20,560
UPDATE AND THANK YOU FOR SHARING

2611
01:50:20,560 --> 01:50:23,160
THE SENTIMENTS AND I ENCOURAGE 

2612
01:50:23,160 --> 01:50:25,760
EVERYONE TO WORK TOGETHER ON THE

2613
01:50:25,760 --> 01:50:27,720
COMMITTEE TO BE EFFECTIVE.

2614
01:50:27,720 --> 01:50:32,200
SO FOR OUR UPDATE TODAY I HAVE 

2615
01:50:32,200 --> 01:50:34,720
SOME UPDATES TO SHARE WITH YOU 

2616
01:50:34,720 --> 01:50:37,480
FROM THE WHITE HOUSE AND GLOBAL 

2617
01:50:37,480 --> 01:50:38,560
POLICY AS WELL AS U.S. FEDERAL 

2618
01:50:38,560 --> 01:50:40,320
ADVISORY COMMITTEE UPDATES.

2619
01:50:40,320 --> 01:50:42,600
THESE ARE HERE IN ORDER FOR THE 

2620
01:50:42,600 --> 01:50:45,280
COMMITTEE TO BE ABLE TO HEAR 

2621
01:50:45,280 --> 01:50:48,280
SOME OF A SELECTED NUMBER OF 

2622
01:50:48,280 --> 01:50:49,520
UPDATES FROM AROUND THE 

2623
01:50:49,520 --> 01:50:50,520
COMMUNITY THAT MIGHT HELP YOU IN

2624
01:50:50,520 --> 01:50:55,680
YOUR WORK AS A COMMITTEE MEMBER.

2625
01:50:55,680 --> 01:50:58,240
FIRST, FROM THE WHITE HOUSE IN 

2626
01:50:58,240 --> 01:51:03,080
MARCH 2022, PRESIDENT BIDEN 

2627
01:51:03,080 --> 01:51:06,280
APPOINTED 21 NEW COMMITTEE 

2628
01:51:06,280 --> 01:51:07,160
MEMBERS MANAGED BY THE 

2629
01:51:07,160 --> 01:51:08,400
ADMINISTRATION BY COMMUNITY 

2630
01:51:08,400 --> 01:51:12,600
LIVING AND ADVISES THE PRESIDENT

2631
01:51:12,600 --> 01:51:15,080
AND SECRETARY OF HHS ON PEOPLE 

2632
01:51:15,080 --> 01:51:16,200
RELATED TO PEOPLE WITH 

2633
01:51:16,200 --> 01:51:17,200
DISABILITIES AND WE'LL BE 

2634
01:51:17,200 --> 01:51:18,880
POSTING THEIR MEETINGS ON OUR 

2635
01:51:18,880 --> 01:51:21,520
WEBSITE AS WELL IF YOU WANT TO 

2636
01:51:21,520 --> 01:51:22,320
SEE THAT.

2637
01:51:22,320 --> 01:51:25,080
ON MARCH 15, 2022, YOU ALL MAY 

2638
01:51:25,080 --> 01:51:26,560
BE AWARE BUT PRESIDENT BIDEN 

2639
01:51:26,560 --> 01:51:29,320
SIGNED INTO LAW THE $1.5 

2640
01:51:29,320 --> 01:51:30,200
TRILLION CONSOLIDATED 

2641
01:51:30,200 --> 01:51:32,600
APPROPRIATIONS ACT OF 2022.

2642
01:51:32,600 --> 01:51:35,800
THAT SENDS FEDERAL AGENCIES 

2643
01:51:35,800 --> 01:51:37,560
$14.5 BILLION FOR SPECIAL 

2644
01:51:37,560 --> 01:51:39,920
EDUCATION AND $6 BILLION FOR 

2645
01:51:39,920 --> 01:51:41,640
HOME AND COMMUNITY-BASED 

2646
01:51:41,640 --> 01:51:42,880
SERVICES.

2647
01:51:42,880 --> 01:51:47,200
ON APRIL 2, PRESIDENT BIDEN 

2648
01:51:47,200 --> 01:51:51,120
ISSUED THE 2022 PROCLAMATION FOR

2649
01:51:51,120 --> 01:51:53,280
AUTISM AWARENESS DAY AND 

2650
01:51:53,280 --> 01:51:54,560
REAFFIRMED HIS ADMINISTRATION'S 

2651
01:51:54,560 --> 01:51:56,960
COMMITMENT AND SUPPORT FOR 

2652
01:51:56,960 --> 01:51:57,880
OPPORTUNITIES FOR PEOPLE ON THE 

2653
01:51:57,880 --> 01:51:59,400
AUTISM SPECTRUM AND THEIR 

2654
01:51:59,400 --> 01:52:07,200
FAMILIES.

2655
01:52:07,200 --> 01:52:10,200
ALSO THE UNITED NATIONS OBSERVED

2656
01:52:10,200 --> 01:52:15,080
WORLD AUTISM AWARENESS DAY AND 

2657
01:52:15,080 --> 01:52:21,080
THE U.N.'S SUPPORT AFFIRMED OF 

2658
01:52:21,080 --> 01:52:23,200
RIGHTS TO PARTICIPATE IN SOCIETY

2659
01:52:23,200 --> 01:52:26,160
AND THE 2030 AGENDA FOR 

2660
01:52:26,160 --> 01:52:26,800
SUSTAINABLE DEVELOPMENT.

2661
01:52:26,800 --> 01:52:29,400
THE SECRETARY GENERAL 

2662
01:52:29,400 --> 01:52:30,360
ACKNOWLEDGED THAT COVID-19 HAS 

2663
01:52:30,360 --> 01:52:33,080
EXACERBATED MANY INEQUALITIES 

2664
01:52:33,080 --> 01:52:34,880
AND HIGHLIGHTS THE CRITICAL 

2665
01:52:34,880 --> 01:52:36,040
IMPORTANCE OF COMMUNITY-BASED 

2666
01:52:36,040 --> 01:52:38,200
SUPPORT SYSTEMS SUCH AS SYSTEMS 

2667
01:52:38,200 --> 01:52:44,120
FOR INCLUSIVE EDUCATION AND THE 

2668
01:52:44,120 --> 01:52:45,760
U.N.'S SPECIAL EVENT TOOK PLACE 

2669
01:52:45,760 --> 01:52:48,080
APRIL 8 AND THE THEME WAS 

2670
01:52:48,080 --> 01:52:49,320
INCLUSIVE QUALITY EDUCATION FOR 

2671
01:52:49,320 --> 01:52:49,600
ALL.

2672
01:52:49,600 --> 01:52:53,800
IT WAS ORGANIZED BY THE U.N. IN 

2673
01:52:53,800 --> 01:52:55,200
SUPPORT WITH THE SUPPORT OF 

2674
01:52:55,200 --> 01:52:57,560
CIVIL SOCIETY PARTNERS INCLUDING

2675
01:52:57,560 --> 01:52:59,200
THE AUTISTIC SELF-ADVOCACY 

2676
01:52:59,200 --> 01:53:00,640
NETWORK AND THE GLOBAL AUTISM 

2677
01:53:00,640 --> 01:53:03,120
PROJECT AND THE FOUNDATION.

2678
01:53:03,120 --> 01:53:05,640
WE ALSO PROVIDED THE LINK IN 

2679
01:53:05,640 --> 01:53:07,200
CASE ANYBODY WANTS TO GO BACK 

2680
01:53:07,200 --> 01:53:08,280
AND WATCH THAT.

2681
01:53:08,280 --> 01:53:10,080
WE ALSO WANTED TO BRING TO YOUR 

2682
01:53:10,080 --> 01:53:12,360
ATTENTION THE WORLD HEALTH 

2683
01:53:12,360 --> 01:53:14,920
ORGANIZATION OR THE WHO HAS 

2684
01:53:14,920 --> 01:53:16,120
LAUNCHED ITS ONLINE CAREGIVER 

2685
01:53:16,120 --> 01:53:18,920
SKILLS TRAINING PACKAGE.

2686
01:53:18,920 --> 01:53:20,000
IN ADVANCE OF WORLD AUTISM 

2687
01:53:20,000 --> 01:53:21,720
AWARENESS DAY THIS ONLINE 

2688
01:53:21,720 --> 01:53:23,960
TRAINING WAS ANNOUNCED AND IT IS

2689
01:53:23,960 --> 01:53:26,400
FOR CAREGIVERS OF CHILDREN WITH 

2690
01:53:26,400 --> 01:53:28,000
DEVELOPMENT DELAYS AND 

2691
01:53:28,000 --> 01:53:28,960
DISABILITIES.

2692
01:53:28,960 --> 01:53:31,200
THIS PROGRAM HAS BEEN PILOTED IN

2693
01:53:31,200 --> 01:53:34,520
MORE THAN 30 COUNTRIES AND 

2694
01:53:34,520 --> 01:53:36,280
TEACHES SKILLS TO PROMOTE THE 

2695
01:53:36,280 --> 01:53:37,880
WELL BEING OF CHILDREN AND IT 

2696
01:53:37,880 --> 01:53:39,120
INCLUDES RECORDED SESSIONS ON A 

2697
01:53:39,120 --> 01:53:41,240
VARIETY OF TOPICS AND ALSO HAS 

2698
01:53:41,240 --> 01:53:43,200
INFORMATION TO HELP CAREGIVERS 

2699
01:53:43,200 --> 01:53:45,040
IMPROVE THEIR OWN WELL BEING.

2700
01:53:45,040 --> 01:53:50,120
AND IN APRIL, WHO'S GOING TO BE 

2701
01:53:50,120 --> 01:53:53,200
LAUNCHING COMPANION MANUALS FOR 

2702
01:53:53,200 --> 01:53:55,160
IN PERSON FACIL ITERS IN 

2703
01:53:55,160 --> 01:53:57,040
TRAINING AND IT WAS DEVELOPED IN

2704
01:53:57,040 --> 01:53:57,600
COLLABORATION WITH AUTISM 

2705
01:53:57,600 --> 01:54:00,480
SPEAKS.

2706
01:54:00,480 --> 01:54:03,800
ANOTHER UPDATE I WANTED TO BRING

2707
01:54:03,800 --> 01:54:05,200
YOU WAS ON THE CANADIAN AUTISM 

2708
01:54:05,200 --> 01:54:06,640
SPECTRUM DISORDER ALLIANCE.

2709
01:54:06,640 --> 01:54:09,560
I WAS ABLE TO BE A PART OF THEIR

2710
01:54:09,560 --> 01:54:11,520
MEETING THIS PAST WEEK AND 

2711
01:54:11,520 --> 01:54:13,720
WANTED TO SHARE A LITTLE BIT 

2712
01:54:13,720 --> 01:54:15,320
WHAT THEY'VE BEEN DOING.

2713
01:54:15,320 --> 01:54:18,200
WIZ FORMED IN 2007 FOCUSSED ON 

2714
01:54:18,200 --> 01:54:19,240
ADDRESSING THE ISSUES AUTISTIC 

2715
01:54:19,240 --> 01:54:21,040
CANADIANS AND THEIR FAMILIES 

2716
01:54:21,040 --> 01:54:23,120
FACE ACROSS THE LIFE SPAN AND 

2717
01:54:23,120 --> 01:54:25,720
HAS BEEN IN THE FOREFRONT OF 

2718
01:54:25,720 --> 01:54:28,120
CREATING A NATIONAL AUTISM 

2719
01:54:28,120 --> 01:54:29,160
STRATEGY LIKE OUR STRATEGIC PLAN

2720
01:54:29,160 --> 01:54:31,200
ADDRESSING FUNDING AND POLICIES 

2721
01:54:31,200 --> 01:54:34,200
FOR THE AUTISM COMMUNITY IN 

2722
01:54:34,200 --> 01:54:34,560
CANADA.

2723
01:54:34,560 --> 01:54:36,560
AND OVER THE YEARS THERE'S BEEN 

2724
01:54:36,560 --> 01:54:39,720
A NUMBER OF CONSULTATIONS WITH 

2725
01:54:39,720 --> 01:54:40,920
STAKEHOLDERS BRINGING IN 

2726
01:54:40,920 --> 01:54:42,840
STAKEHOLDER INPUT AND THEY 

2727
01:54:42,840 --> 01:54:45,000
ISSUED A BLUEPRINT FOR A 

2728
01:54:45,000 --> 01:54:46,360
NATIONAL ASD STRATEGY.

2729
01:54:46,360 --> 01:54:48,760
IN 2020 THEY ISSUED A ROAD MAP 

2730
01:54:48,760 --> 01:54:50,080
FOR A NATIONAL AUTISM STRATEGY 

2731
01:54:50,080 --> 01:54:51,400
THAT FOCUSSED ON THE PROCESS AND

2732
01:54:51,400 --> 01:54:54,320
TIME LINE FOR THAT NATIONAL 

2733
01:54:54,320 --> 01:54:54,800
STRATEGY.

2734
01:54:54,800 --> 01:54:57,080
AND IN THE FUTURE THEY HOPE TO 

2735
01:54:57,080 --> 01:54:58,320
FORM AN ADVISORY COMMITTEE WITH 

2736
01:54:58,320 --> 01:54:59,160
BROAD REPRESENTATION FROM ACROSS

2737
01:54:59,160 --> 01:55:05,840
THE PROVINCES IN CANADA.

2738
01:55:05,840 --> 01:55:07,840
THEY OVERSEE THE READY, WILLING 

2739
01:55:07,840 --> 01:55:10,840
AND ABLE PROGRAM WITH INCLUSION 

2740
01:55:10,840 --> 01:55:11,640
OF CANADA AND MAY BE INTERESTED 

2741
01:55:11,640 --> 01:55:12,800
FOR SOME OF YOU INTERESTED IN 

2742
01:55:12,800 --> 01:55:13,200
EMPLOYMENT.

2743
01:55:13,200 --> 01:55:16,440
AS A SAID, THEY RECENTLY HELD 

2744
01:55:16,440 --> 01:55:19,120
THEY'RE EIGHTH ANNUAL CANADIAN 

2745
01:55:19,120 --> 01:55:21,040
LEADERSHIP SUMMIT APRIL 4 AND 5 

2746
01:55:21,040 --> 01:55:23,120
AND COVERED EQUITY, DIVERSITY 

2747
01:55:23,120 --> 01:55:25,000
AND INCLUSION IN POLICY 

2748
01:55:25,000 --> 01:55:26,040
DEVELOPMENT INCLUDING INDIGENOUS

2749
01:55:26,040 --> 01:55:27,400
AND OTHER UNDER REPRESENTED 

2750
01:55:27,400 --> 01:55:28,160
POPULATIONS AND SOME OF THE 

2751
01:55:28,160 --> 01:55:31,400
OTHER TOPICS THEY COVERED WERE 

2752
01:55:31,400 --> 01:55:32,960
EMPLOYMENT, HOUSING, 

2753
01:55:32,960 --> 01:55:33,960
NON-SPEAKING AUTISM AND THE 

2754
01:55:33,960 --> 01:55:35,400
EXPERIENCE OF ADULTS DIAGNOSED 

2755
01:55:35,400 --> 01:55:43,040
IN LATER LIFE.

2756
01:55:43,040 --> 01:55:45,560
IT INCLUDED THE PANEL ON AUTISM 

2757
01:55:45,560 --> 01:55:48,680
STRATEGIC PLAN AND PROSPECTIVES 

2758
01:55:48,680 --> 01:55:50,800
AND LESSONS LEARNS AND COUNTRIES

2759
01:55:50,800 --> 01:55:54,160
WERE U.S., U.K., MALTA, AUTISM 

2760
01:55:54,160 --> 01:55:55,360
EUROPE AND THE PUBLIC HEALTH 

2761
01:55:55,360 --> 01:56:00,320
AGENCY OF CANADA AND I WAS ABLE 

2762
01:56:00,320 --> 01:56:07,200
TO SHARE THE ROLE OF THE IACC 

2763
01:56:07,200 --> 01:56:11,160
STRATEGIC PLAN IN POLICY IN THE 

2764
01:56:11,160 --> 01:56:12,000
U.S.

2765
01:56:12,000 --> 01:56:14,880
NEXT I'D LIKE TO SHARE SOME 

2766
01:56:14,880 --> 01:56:16,080
UPDATES FROM ADVISORY COMMITTEES

2767
01:56:16,080 --> 01:56:17,640
WORKING AND THE DISABILITY 

2768
01:56:17,640 --> 01:56:19,160
RELATED ISSUES.

2769
01:56:19,160 --> 01:56:22,200
FIRST, THE FEDERAL PARTNERS IN 

2770
01:56:22,200 --> 01:56:23,000
TRANSITION.

2771
01:56:23,000 --> 01:56:25,160
THEY RECENTLY HELD A MEETING 

2772
01:56:25,160 --> 01:56:29,000
MARCH 17, 2022 AND THEY'RE 

2773
01:56:29,000 --> 01:56:30,000
MEETING FEATURED THE OFFICE 

2774
01:56:30,000 --> 01:56:32,080
LABOR OF DISABILITY EMPLOYMENT 

2775
01:56:32,080 --> 01:56:33,080
POLICY AND INCLUDED 

2776
01:56:33,080 --> 01:56:34,200
REPRESENTATIVES OF THE CENTER 

2777
01:56:34,200 --> 01:56:40,640
FOR ADVANCING POLICY ON 

2778
01:56:40,640 --> 01:56:41,880
EMPLOYMENT FOR YOUTH.

2779
01:56:41,880 --> 01:56:43,760
YOU MAY BE INTERESTED IN THAT.

2780
01:56:43,760 --> 01:56:46,120
WITH THE INTERAGENCY COMMITTEE 

2781
01:56:46,120 --> 01:56:48,080
ON DISABILITY RESEARCH OR THE 

2782
01:56:48,080 --> 01:56:50,320
ICDR, THEY RECENTLY PUBLISHED 

2783
01:56:50,320 --> 01:56:54,400
THEIR 2021 ICDR ACCOMPLISHMENTS 

2784
01:56:54,400 --> 01:56:57,760
REPORT AND IT HIGHLIGHTS 

2785
01:56:57,760 --> 01:57:03,040
RESEARCH THROUGHOUT FY20-21 AND 

2786
01:57:03,040 --> 01:57:04,720
THE EXECUTIVE COMMITTEE HELD A 

2787
01:57:04,720 --> 01:57:06,000
MEETING FEBRUARY 24 WHERE THEY 

2788
01:57:06,000 --> 01:57:08,000
BRAIN STORMED AND ASKED FOR 

2789
01:57:08,000 --> 01:57:10,720
INPUT ON HOW THE ICDR COULD 

2790
01:57:10,720 --> 01:57:12,440
SHAPE ITS FOCUS ON THREE NEW 

2791
01:57:12,440 --> 01:57:17,800
AREAS WHICH ARE EQUITY, 

2792
01:57:17,800 --> 01:57:19,000
DISABILITY DATA AND STATISTICS 

2793
01:57:19,000 --> 01:57:19,640
AND COVID-19 AND REHABILITATION 

2794
01:57:19,640 --> 01:57:27,440
RESEARCH.

2795
01:57:27,440 --> 01:57:29,240
THE NATIONAL COUNCIL ON 

2796
01:57:29,240 --> 01:57:29,880
DISABILITY WHICH SAY FEDERAL 

2797
01:57:29,880 --> 01:57:32,360
AGENCY PUBLISHED IN FEBRUARY 

2798
01:57:32,360 --> 01:57:33,360
2022 A NEW HEALTH EQUITY 

2799
01:57:33,360 --> 01:57:34,960
FRAMEWORK FOR PEOPLE WITH 

2800
01:57:34,960 --> 01:57:35,600
DISABILITIES AND HELD A VIRTUAL 

2801
01:57:35,600 --> 01:57:37,440
MEETING TO SHARE WITH THE 

2802
01:57:37,440 --> 01:57:38,000
PUBLIC.

2803
01:57:38,000 --> 01:57:39,160
THIS FRAMEWORK IS A BLUEPRINT 

2804
01:57:39,160 --> 01:57:40,920
THAT IS GOING TO HELP POLICY 

2805
01:57:40,920 --> 01:57:45,120
MAKERS TO DISPARITIES AND 

2806
01:57:45,120 --> 01:57:51,080
INEQUITIES WITHIN DISABILITY AND

2807
01:57:51,080 --> 01:57:53,040
INCLUDED INPUT FROM ADVOCACY 

2808
01:57:53,040 --> 01:57:54,640
ORGANIZATIONS AND THERE'S FOUR 

2809
01:57:54,640 --> 01:57:55,800
PILLARS INCLUDING THE 

2810
01:57:55,800 --> 01:57:57,560
DESIGNATION OF PEOPLE WITH 

2811
01:57:57,560 --> 01:58:02,200
DISABILITIES AS A SPECIAL 

2812
01:58:02,200 --> 01:58:04,440
MEDICALLY UNDER SERVED 

2813
01:58:04,440 --> 01:58:06,600
POPULATION TO ESTABLISH THIS IS 

2814
01:58:06,600 --> 01:58:07,200
A DISPARITY POPULATION AND 

2815
01:58:07,200 --> 01:58:09,880
CLINIC CARE CURRICULA TO TRAIN 

2816
01:58:09,880 --> 01:58:15,000
PROVIDERS ON ALL DISABILITIES 

2817
01:58:15,000 --> 01:58:16,600
ACROSS THE LIFE SPAN WHICH 

2818
01:58:16,600 --> 01:58:18,200
RELATE TO TRAINING FOR ADULT 

2819
01:58:18,200 --> 01:58:19,160
PROVIDERS.

2820
01:58:19,160 --> 01:58:22,880
REQUIRING ACCESSIBILITY OF 

2821
01:58:22,880 --> 01:58:25,600
MEDICAL DIAGNOSTIC EQUIPMENT AND

2822
01:58:25,600 --> 01:58:27,120
IMPROVING DATA CAPTURE WITH 

2823
01:58:27,120 --> 01:58:31,200
DISABILITY STATUS IN ALL PUBLIC 

2824
01:58:31,200 --> 01:58:33,880
HEALTH SURVEILLANCE SYSTEMS.

2825
01:58:33,880 --> 01:58:36,560
ANY TRACKING AND SURVEYS AND 

2826
01:58:36,560 --> 01:58:37,200
CAPTURING DATA ACROSS THE LIFE 

2827
01:58:37,200 --> 01:58:42,400
SPAN.

2828
01:58:42,400 --> 01:58:44,760
THE LINK IS PROVIDED AND THE 

2829
01:58:44,760 --> 01:58:46,520
NATIONAL COUNCIL ON DISABILITY 

2830
01:58:46,520 --> 01:58:49,600
PUBLISHED A REPORT ON MEDICAID 

2831
01:58:49,600 --> 01:58:51,840
HEALTH COVERAGE ON ADULTS WITH 

2832
01:58:51,840 --> 01:58:52,880
MENTALITY DISABILITIES AND YOU 

2833
01:58:52,880 --> 01:58:55,200
MAY WANT TO CHECK OUT THAT 

2834
01:58:55,200 --> 01:58:57,480
REPORT.

2835
01:58:57,480 --> 01:59:00,000
AN UPDATE ON THE RAISED FAMILY 

2836
01:59:00,000 --> 01:59:02,040
ADVISORY COUNCIL MANAGE THE ACL 

2837
01:59:02,040 --> 01:59:03,560
IS THEY RECENTLY HELD AN OPEN 

2838
01:59:03,560 --> 01:59:05,520
CALL FOR NOMINATIONS FOR THIS 

2839
01:59:05,520 --> 01:59:07,520
COUNCIL THAT JUST CLOSED THIS 

2840
01:59:07,520 --> 01:59:10,280
PAST MONDAY APRIL 11 AND THEY'RE

2841
01:59:10,280 --> 01:59:13,640
GOING TO BE ADDING UP TO 15 

2842
01:59:13,640 --> 01:59:15,080
NON-FEDERAL VOTING MEMBERS 

2843
01:59:15,080 --> 01:59:17,520
INCLUDING FAMILY CAREGIVERS, 

2844
01:59:17,520 --> 01:59:18,520
OLDER ADULTS WHO NEED LONG-TERM 

2845
01:59:18,520 --> 01:59:20,240
SERVICES AND SUPPORTS, 

2846
01:59:20,240 --> 01:59:21,760
INDIVIDUALS WITH DISABILITIES, 

2847
01:59:21,760 --> 01:59:25,120
HEALTH CARE AND SOCIAL SERVICE 

2848
01:59:25,120 --> 01:59:26,440
PROVIDERS, PROVIDERS OF 

2849
01:59:26,440 --> 01:59:27,640
LONG-TERM SERVICES AND SUPPORTS 

2850
01:59:27,640 --> 01:59:32,320
AND EMPLOYERS AND PROFESSIONAL 

2851
01:59:32,320 --> 01:59:33,600
WORKERS AND VETERANS AND OTHER 

2852
01:59:33,600 --> 01:59:34,640
KINDS OF EXPERTS.

2853
01:59:34,640 --> 01:59:36,840
YOU CAN BE WATCHING FOR AN 

2854
01:59:36,840 --> 01:59:38,120
ANNOUNCEMENT IN THE FUTURE ABOUT

2855
01:59:38,120 --> 01:59:39,360
WHO WILL BE JOINING THE 

2856
01:59:39,360 --> 01:59:55,560
IMPORTANT COUNCIL.

2857
01:59:55,560 --> 01:59:59,000
ALSO I HAVE UPDATES FROM THIS 

2858
01:59:59,000 --> 02:00:00,640
COMMITTEE AND THEY WILL MEET 

2859
02:00:00,640 --> 02:00:03,160
APRIL 13 WHICH IS TODAY SO THEY 

2860
02:00:03,160 --> 02:00:04,520
MAY BE MEETING RIGHT NOW AND THE

2861
02:00:04,520 --> 02:00:06,320
FULL AGENDA FOR THE MEETING IS 

2862
02:00:06,320 --> 02:00:08,600
PROVIDED ON THE LINK AND ON OUR 

2863
02:00:08,600 --> 02:00:09,520
WEBSITE AS WELL.

2864
02:00:09,520 --> 02:00:12,600
THE AGENDA INCLUDES A 

2865
02:00:12,600 --> 02:00:14,400
PRESENTATION ON HOW STATE COURTS

2866
02:00:14,400 --> 02:00:15,920
ADDRESS MENTAL ILLNESS AND 

2867
02:00:15,920 --> 02:00:17,560
SEVERAL WORK GROUP REPORTS FROM 

2868
02:00:17,560 --> 02:00:19,800
VARIOUS WORKING GROUPS THEY HAVE

2869
02:00:19,800 --> 02:00:21,680
IN THE ISMC.

2870
02:00:21,680 --> 02:00:24,720
AND LASTLY, I WANTED TO SHARE AN

2871
02:00:24,720 --> 02:00:26,200
UPDATE FROM THE DISABILITY 

2872
02:00:26,200 --> 02:00:28,280
ADVISORY COMMITTEE OF THE 

2873
02:00:28,280 --> 02:00:29,440
FEDERAL COMMUNICATIONS 

2874
02:00:29,440 --> 02:00:29,880
COMMISSION.

2875
02:00:29,880 --> 02:00:34,280
THEY'RE CURRENTLY SEEKING PUBLIC

2876
02:00:34,280 --> 02:00:36,400
FEEDBACK ON THE 21st CENTURY 

2877
02:00:36,400 --> 02:00:38,120
COMMUNICATION AND ACCESSIBILITY 

2878
02:00:38,120 --> 02:00:40,080
REPORT AND PREPARING A BIENNIAL 

2879
02:00:40,080 --> 02:00:41,440
REPORT DUE IN OCTOBER.

2880
02:00:41,440 --> 02:00:42,760
THEY'RE ASKING FOR COMMENTS ON A

2881
02:00:42,760 --> 02:00:45,000
NUMBER OF TOPICS.

2882
02:00:45,000 --> 02:00:46,960
I PROVIDED A FEW INCLUDING 

2883
02:00:46,960 --> 02:00:49,320
COMPLIANCE FOR 

2884
02:00:49,320 --> 02:00:50,000
TELECOMMUNICATIONS AND ADVANCED 

2885
02:00:50,000 --> 02:00:51,600
COMMUNICATION SERVICE OR ACS, 

2886
02:00:51,600 --> 02:00:54,800
EQUIPMENT USED FOR THE SERVICES 

2887
02:00:54,800 --> 02:00:57,120
AND INTERNET BROWSERS BUILT INTO

2888
02:00:57,120 --> 02:00:59,960
MOBILE PHONES AND TO BE 

2889
02:00:59,960 --> 02:01:01,400
ACCESSIBLE AND USABLE FOR PEOPLE

2890
02:01:01,400 --> 02:01:02,320
WITH DISABILITIES AND LOOKING 

2891
02:01:02,320 --> 02:01:04,760
FOR INFORMATION ON BARRIERS TO 

2892
02:01:04,760 --> 02:01:05,840
ACCESS TO NEW COMMUNICATIONS 

2893
02:01:05,840 --> 02:01:07,200
TECHNOLOGY FOR PEOPLE WITH 

2894
02:01:07,200 --> 02:01:07,720
DISABILITIES.

2895
02:01:07,720 --> 02:01:09,800
IF YOU'RE INCLINED TO PROVIDE 

2896
02:01:09,800 --> 02:01:11,320
FEEDBACK, FEEL FREE TO ACCESS 

2897
02:01:11,320 --> 02:01:15,160
THAT LINK.

2898
02:01:15,160 --> 02:01:16,800
THAT CONCLUDES MY REPORT AND IF 

2899
02:01:16,800 --> 02:01:18,760
THERE ARE ANY QUESTIONS, I'M 

2900
02:01:18,760 --> 02:01:21,080
HAPPY TO ANSWER THEM OR WE CAN 

2901
02:01:21,080 --> 02:01:32,200
MOVE TO THE NEXT SECTION.

2902
02:01:32,200 --> 02:01:33,160
SCOTT.

2903
02:01:33,160 --> 02:01:40,240
>> THANKS, SUSAN FOR SHARING 

2904
02:01:40,240 --> 02:01:40,480
THAT.

2905
02:01:40,480 --> 02:01:41,520
THE OFFICE OF ASSISTANT 

2906
02:01:41,520 --> 02:01:45,160
SECRETARY FOR PREPAREDNESS AND 

2907
02:01:45,160 --> 02:01:47,480
RESPONSE RECENTLY LAUNCHED AN 

2908
02:01:47,480 --> 02:01:48,800
ADVISORY COMMITTEE ON 

2909
02:01:48,800 --> 02:01:51,240
INDIVIDUALS ON DISABILITIES AND 

2910
02:01:51,240 --> 02:01:51,520
DISASTERS.

2911
02:01:51,520 --> 02:01:54,840
IT MET JOINTLY LAST MONTH WITH 

2912
02:01:54,840 --> 02:01:57,040
THE COMMITTEE FOCUSSED ON THE 

2913
02:01:57,040 --> 02:01:57,840
CONTEXT FOR SENIORS.

2914
02:01:57,840 --> 02:02:00,720
THEY MET TOGETHER AND I ASSUME 

2915
02:02:00,720 --> 02:02:02,440
THAT THE COMMITTEE FOR 

2916
02:02:02,440 --> 02:02:04,200
INDIVIDUALS WITH DISABILITIES 

2917
02:02:04,200 --> 02:02:05,920
WILL BE MEETING SEPARATELY IN 

2918
02:02:05,920 --> 02:02:06,960
THE COMING MONTHS.

2919
02:02:06,960 --> 02:02:09,120
THAT MIGHT BE OF INTEREST SINCE 

2920
02:02:09,120 --> 02:02:12,280
NOT ONLY DOES THAT FOCUS BROADLY

2921
02:02:12,280 --> 02:02:14,400
ON DISASTERS BUT ALSO THAT'S 

2922
02:02:14,400 --> 02:02:16,000
INCLUSIVE TO MEDICAL AND 

2923
02:02:16,000 --> 02:02:18,280
HEALTH-RELATED ONES SUCH AS WHAT

2924
02:02:18,280 --> 02:02:20,960
WE HAVE NOW WITH COVID-19 AND 

2925
02:02:20,960 --> 02:02:22,640
PREPARATION FOR FUTURE POTENTIAL

2926
02:02:22,640 --> 02:02:27,280
PUBLIC HEALTH EMERGENCIES 

2927
02:02:27,280 --> 02:02:30,640
INCLUDING IF THERE ARE OTHER 

2928
02:02:30,640 --> 02:02:32,440
EPIDEMICS OR PANDEMIC S THAT 

2929
02:02:32,440 --> 02:02:34,840
COULD OCCUR IN YEARS TO COME.

2930
02:02:34,840 --> 02:02:39,160
I THINK IT'S IMPORTANT FOR 

2931
02:02:39,160 --> 02:02:42,440
ACCESSIBILITY FOR FOLKS WITH 

2932
02:02:42,440 --> 02:02:44,120
DEVELOPMENTAL DISABILITIES 

2933
02:02:44,120 --> 02:02:45,600
INCLUDING AUTISTIC PEOPLE.

2934
02:02:45,600 --> 02:02:46,760
>> THANK YOU FOR SHARING THAT 

2935
02:02:46,760 --> 02:02:48,600
UPDATE AND WE'LL INCLUDE IT IN 

2936
02:02:48,600 --> 02:02:49,560
OUR LIST FOR NEXT TIME.

2937
02:02:49,560 --> 02:02:51,200
THANK YOU FOR HIGHLIGHTING THAT.

2938
02:02:51,200 --> 02:02:53,200
IF ANYONE ON THE COMMITTEE IS ON

2939
02:02:53,200 --> 02:02:56,400
ANOTHER DISABILITY COMMITTEE I 

2940
02:02:56,400 --> 02:02:58,000
DOESN'T HIGHLIGHT AND YOU WANT 

2941
02:02:58,000 --> 02:03:03,560
TO SHARE A HIGHLIGHT FEEL FREE 

2942
02:03:03,560 --> 02:03:10,000
TO JOIN.

2943
02:03:10,000 --> 02:03:12,000
>> I'LL GET YOU THE URLs.

2944
02:03:12,000 --> 02:03:13,560
>> I'D APPRECIATE THAT.

2945
02:03:13,560 --> 02:03:14,600
ANYONE ELSE?

2946
02:03:14,600 --> 02:03:15,120
WELL, THANK YOU.

2947
02:03:15,120 --> 02:03:17,280
ALL THE LINK ARE HERE AND WE 

2948
02:03:17,280 --> 02:03:19,800
HAVE THINGS ON OUR WEBSITE TOO, 

2949
02:03:19,800 --> 02:03:22,560
BUT IF YOU HAVE QUESTIONS, FEEL 

2950
02:03:22,560 --> 02:03:27,080
FREE TO SEND US AN E-MAIL.

2951
02:03:27,080 --> 02:03:33,080
WE'LL MOVE TO THE NEXT SECTION.

2952
02:03:33,080 --> 02:03:34,000
IACC COMMITTEE BUSINESS.

2953
02:03:34,000 --> 02:03:35,200
I'LL KICK THIS OFF.

2954
02:03:35,200 --> 02:03:37,120
FOR COMMITTEE BUSINESS TODAY I 

2955
02:03:37,120 --> 02:03:40,640
HAVE A FEW DIFFERENT ISSUES TO 

2956
02:03:40,640 --> 02:03:40,880
DISCUSS.

2957
02:03:40,880 --> 02:03:41,600
ONE IS AUTISM AWARENESS MONTH TO

2958
02:03:41,600 --> 02:03:43,800
GIVE YOU MORE DETAIL.

2959
02:03:43,800 --> 02:03:46,920
SOME UPCOMING MEETINGS OF THE 

2960
02:03:46,920 --> 02:03:47,160
IACC.

2961
02:03:47,160 --> 02:03:50,200
A STRATEGIC PLAN DISCUSSION AND 

2962
02:03:50,200 --> 02:03:52,480
THEN WE'LL BE TALKING ABOUT THE 

2963
02:03:52,480 --> 02:03:53,640
IACC SUMMARY OF ADVANCES.

2964
02:03:53,640 --> 02:03:57,120
SO AS YOU ALL KNOW, APRIL IS 

2965
02:03:57,120 --> 02:03:58,440
AUTISM AWARENESS MONTH.

2966
02:03:58,440 --> 02:04:01,680
I'D LIKE TO INVITE EVERYONE TO 

2967
02:04:01,680 --> 02:04:09,000
JOIN US ON APRIL 27, OR OAC AND 

2968
02:04:09,000 --> 02:04:10,600
MINH HAVE ANIMATING THE FUTURE 

2969
02:04:10,600 --> 02:04:14,600
FOR EXCEPTIONAL MINDS.

2970
02:04:14,600 --> 02:04:15,600
WE'LL BE HOSTING A WONDERFUL 

2971
02:04:15,600 --> 02:04:17,400
ORGANIZATION CALLED EXCEPTIONAL 

2972
02:04:17,400 --> 02:04:18,000
MINDS ON THE WEST COAST THAT 

2973
02:04:18,000 --> 02:04:21,040
TRAINS YOUNG ADULTS AND THE 

2974
02:04:21,040 --> 02:04:23,120
AUTISM SPECTRUM FOR CAREERS IN 

2975
02:04:23,120 --> 02:04:24,920
ANIMATION, DIGITAL ARTS AND 

2976
02:04:24,920 --> 02:04:26,160
ENTERTAINMENT.

2977
02:04:26,160 --> 02:04:28,320
THERE'LL BE SHARING SOME OF 

2978
02:04:28,320 --> 02:04:29,400
THEIR ANIMATION THEY'LL ALSO 

2979
02:04:29,400 --> 02:04:31,200
TALK ABOUT THEIR WORK AND WE'LL 

2980
02:04:31,200 --> 02:04:33,080
BE DOING AN INTERVIEW.

2981
02:04:33,080 --> 02:04:35,200
WE'D LOVE TO HAVE YOU JOIN US 

2982
02:04:35,200 --> 02:04:37,400
FOR THAT.

2983
02:04:37,400 --> 02:04:40,440
ALSO CHECK OUT OUR NEW APRIL 

2984
02:04:40,440 --> 02:04:44,200
2022 ADDITION OF THE OARC 

2985
02:04:44,200 --> 02:04:45,080
NEWSLETTER WE SENT YESTERDAY AND

2986
02:04:45,080 --> 02:04:46,960
POSTED ON OUR WEBSITE.

2987
02:04:46,960 --> 02:04:47,640
WE HAVE SEVERAL INTERESTING AND 

2988
02:04:47,640 --> 02:04:48,640
IMPORTANT UPDATES FROM AROUND 

2989
02:04:48,640 --> 02:04:51,400
THE COMMUNITY YOU MIGHT WANT TO 

2990
02:04:51,400 --> 02:04:56,040
SEE.

2991
02:04:56,040 --> 02:05:00,480
IN ADDITION OUR OFFICE HAS AN 

2992
02:05:00,480 --> 02:05:03,960
AUTISM AWARENESS MONTH PAGE WE 

2993
02:05:03,960 --> 02:05:05,000
USED TO COLLECT INFORMATION FROM

2994
02:05:05,000 --> 02:05:08,200
ORGANIZATIONS HOSTING EVENTS 

2995
02:05:08,200 --> 02:05:09,120
DURING THE MONTH WE'D WELCOME TO

2996
02:05:09,120 --> 02:05:10,400
YOU LOOK AT THAT AND CHECK OUT 

2997
02:05:10,400 --> 02:05:12,520
WHAT'S GOING ON AROUND THE 

2998
02:05:12,520 --> 02:05:15,400
COUNTRY AND EVEN INTERNATIONAL 

2999
02:05:15,400 --> 02:05:20,200
EVENTS.

3000
02:05:20,200 --> 02:05:22,680
IN TERMS OF IACC MEETINGS I 

3001
02:05:22,680 --> 02:05:24,440
WANTED EVERYONE TO KNOW, OUR 

3002
02:05:24,440 --> 02:05:26,800
CURRENT PLANS ARE TO HAVE A 

3003
02:05:26,800 --> 02:05:28,360
STRATEGIC PLAN WORK GROUP 

3004
02:05:28,360 --> 02:05:31,520
MEETING VIRTUAL JULY 13 AND 14, 

3005
02:05:31,520 --> 02:05:31,800
2022.

3006
02:05:31,800 --> 02:05:34,160
AND I'M SHARING SOME OF THESE 

3007
02:05:34,160 --> 02:05:34,880
UPDATES BEFORE WE GET IN 

3008
02:05:34,880 --> 02:05:36,040
DISCUSSION SO WE DON'T RUN OUT 

3009
02:05:36,040 --> 02:05:38,720
OF TIME AT THE END.

3010
02:05:38,720 --> 02:05:39,920
ALSO, THE IACC FULL COMMITTEE 

3011
02:05:39,920 --> 02:05:42,320
MEETING COMING UP NEXT IS GOING 

3012
02:05:42,320 --> 02:05:44,120
TO BE OCTOBER 26 AND IT WILL BE 

3013
02:05:44,120 --> 02:05:45,560
EITHER VIRTUAL OR HYBRID.

3014
02:05:45,560 --> 02:05:50,520
WE DON'T KNOW YET.

3015
02:05:50,520 --> 02:05:52,760
WE'LL KEEP YOU INFORMED OF THAT 

3016
02:05:52,760 --> 02:05:55,000
CHECK THE WEBSITE FOR OTHER 

3017
02:05:55,000 --> 02:05:55,240
UPDATES.

3018
02:05:55,240 --> 02:05:57,080
LET'S START WITH THE IACC 

3019
02:05:57,080 --> 02:05:58,880
STRATEGIC PLAN DISCUSSION THAT 

3020
02:05:58,880 --> 02:06:02,200
WE HAVE PLANNED FOR TODAY.

3021
02:06:02,200 --> 02:06:04,200
THIS IS THE DISCUSSION OF OUR 

3022
02:06:04,200 --> 02:06:04,800
TIME LINE AND PROCESS.

3023
02:06:04,800 --> 02:06:07,600
SO I WANTED TO SHARE WITH YOU 

3024
02:06:07,600 --> 02:06:10,280
THAT THE TIME LINE SO FAR ON THE

3025
02:06:10,280 --> 02:06:11,960
STRATEGIC PLAN IS THAT IN 

3026
02:06:11,960 --> 02:06:14,200
OCTOBER THROUGH NOVEMBER OF 

3027
02:06:14,200 --> 02:06:15,640
2021, OUR OFFICE COLLECTED 

3028
02:06:15,640 --> 02:06:17,200
FEEDBACK ON THE STRATEGIC PLAN 

3029
02:06:17,200 --> 02:06:19,160
FROM THE GENERAL PUBLIC THROUGH 

3030
02:06:19,160 --> 02:06:21,520
A REQUEST FOR INFORMATION AND WE

3031
02:06:21,520 --> 02:06:24,200
PRESENTED THESE RESULTS AT THE 

3032
02:06:24,200 --> 02:06:27,240
JANUARY IACC MEETING AND 

3033
02:06:27,240 --> 02:06:30,080
DISCUSSED THEM THERE.

3034
02:06:30,080 --> 02:06:33,000
AND IN JANUARY 2022, MEMBER WERE

3035
02:06:33,000 --> 02:06:37,080
ABLE TO DISCUSS ASPECTS IN OUR 

3036
02:06:37,080 --> 02:06:39,120
DISCUSSION AND DECIDED TO 

3037
02:06:39,120 --> 02:06:44,840
ADDRESS THE IMPACT OF COVID-19 

3038
02:06:44,840 --> 02:06:50,640
AND MEMBERS WANTED THAT FORWARD 

3039
02:06:50,640 --> 02:06:54,120
FACING AND WE WOULD AND ADDRESS 

3040
02:06:54,120 --> 02:06:59,160
DISPARITY AND EXTEND THE TIME 

3041
02:06:59,160 --> 02:07:01,320
LINE FOR FIVE YEARS AND FROM 

3042
02:07:01,320 --> 02:07:04,040
NOVEMBER 2021 TO MARCH 2022 OUR 

3043
02:07:04,040 --> 02:07:07,160
OFFICE ALSO HAD A SURVEY THAT WE

3044
02:07:07,160 --> 02:07:08,840
SENT OUT TO IACC TO COLLECT 

3045
02:07:08,840 --> 02:07:10,400
FEEDBACK ON WHAT YOU WANT TO SEE

3046
02:07:10,400 --> 02:07:15,680
IN THE NEXT STRATEGIC PLAN AND 

3047
02:07:15,680 --> 02:07:21,160
I'M GOING TO WALK YOU THROUGH 

3048
02:07:21,160 --> 02:07:22,200
THAT AND WHAT HAPPENS AFTER THE 

3049
02:07:22,200 --> 02:07:25,000
MEETING IS IN APRIL THROUGH 

3050
02:07:25,000 --> 02:07:28,160
JUNE, OARC STAFF WILL TAKE THE 

3051
02:07:28,160 --> 02:07:29,320
INPUT RECEIVED AND PREPARE A 

3052
02:07:29,320 --> 02:07:31,200
DRAFT OF AN UPDATED STRATEGIC 

3053
02:07:31,200 --> 02:07:36,400
PLAN INCORPORATING YOUR FEEDBACK

3054
02:07:36,400 --> 02:07:37,520
AND THE FEEDBACK OF THE 

3055
02:07:37,520 --> 02:07:40,480
COMMUNITY AND OUR PLAN IS TO 

3056
02:07:40,480 --> 02:07:42,880
SHARE THAT IN JULY.

3057
02:07:42,880 --> 02:07:46,120
IN MAY, WE PLAN TO ASK YOU FOR 

3058
02:07:46,120 --> 02:07:46,720
FEEDBACK ON THE MISSION AND 

3059
02:07:46,720 --> 02:07:48,640
VALUE STATEMENTS TO SEE IF YOU 

3060
02:07:48,640 --> 02:07:50,480
HAVE ANY UPDATES FOR THOSE AS 

3061
02:07:50,480 --> 02:07:53,400
WELL SO BE WATCHING FOR THAT.

3062
02:07:53,400 --> 02:07:55,880
OUR PLAN IS TO SEND OUT THE 

3063
02:07:55,880 --> 02:07:57,360
FIRST DRAFT OF THE STRATEGIC 

3064
02:07:57,360 --> 02:08:02,320
PLAN TO IACC MEMBERS IN EARLY 

3065
02:08:02,320 --> 02:08:04,480
JULY PRIOR TO THE JULY 13, 14 

3066
02:08:04,480 --> 02:08:05,200
MEETING.

3067
02:08:05,200 --> 02:08:05,800
THAT WILL BE.

3068
02:08:05,800 --> 02:08:07,160
TO ALL IACC MEMBERS.

3069
02:08:07,160 --> 02:08:11,680
DON'T HAVE TO HAVE A SPECIFIC 

3070
02:08:11,680 --> 02:08:14,000
MEMBERSHIP ON THE WORKING GROUP.

3071
02:08:14,000 --> 02:08:14,960
WE KNOW SOME PEOPLE MAY BE ON 

3072
02:08:14,960 --> 02:08:16,480
VACATION BECAUSE IT'S IN THE 

3073
02:08:16,480 --> 02:08:17,960
SUMMER BUT WE ALSO WILL HAVE A 

3074
02:08:17,960 --> 02:08:19,800
SURVEY MONKEY SURVEY YOU CAN USE

3075
02:08:19,800 --> 02:08:25,640
TO FILL OUT ANY FEEDBACK YOU 

3076
02:08:25,640 --> 02:08:31,200
WANT TO SHARE AND ASKING FOR 

3077
02:08:31,200 --> 02:08:33,840
GLOBAL FEEDBACK BECAUSE DOING SO

3078
02:08:33,840 --> 02:08:37,400
MANY LINE ITEMS IS NOT EFFECTIVE

3079
02:08:37,400 --> 02:08:39,000
SO WE'LL GIVE YOU AN OPPORTUNITY

3080
02:08:39,000 --> 02:08:43,960
FOR GLOBAL COMMENTS WE'LL TRY TO

3081
02:08:43,960 --> 02:08:45,040
INCORPORATE IN THE DRAFT.

3082
02:08:45,040 --> 02:08:46,240
AND DURING JULY THROUGH 

3083
02:08:46,240 --> 02:08:48,760
SEPTEMBER OUR TEAM WILL BE 

3084
02:08:48,760 --> 02:08:51,120
REVISING THAT DRAFT BASED ON 

3085
02:08:51,120 --> 02:08:53,360
FEEDBACK WE HEARD AND IN OCTOBER

3086
02:08:53,360 --> 02:08:55,600
WE'LL BE MEETING AGAIN WITH THE 

3087
02:08:55,600 --> 02:08:57,000
GOAL OF APPROVING A DRAFT OF THE

3088
02:08:57,000 --> 02:08:59,200
STRATEGIC PLAN AND WE HOPE WE 

3089
02:08:59,200 --> 02:09:00,720
CAN GET IT INTO SHAPE WHERE IT 

3090
02:09:00,720 --> 02:09:01,880
WOULD BE ABLE TO BE APPROVED.

3091
02:09:01,880 --> 02:09:04,920
IF NOT WE WOULD HAVE A PLAN B TO

3092
02:09:04,920 --> 02:09:05,560
CONTINUE DISCUSSIONS UNTIL WE 

3093
02:09:05,560 --> 02:09:08,040
CAN GET IT APPROVED BUT I KNOW 

3094
02:09:08,040 --> 02:09:09,800
THE WHOLE COMMITTEE OF COURSE IS

3095
02:09:09,800 --> 02:09:11,680
ALSO EAGER TO PUT TOGETHER 

3096
02:09:11,680 --> 02:09:13,400
STRATEGIC PLAN BECAUSE ONCE IT'S

3097
02:09:13,400 --> 02:09:15,480
IN THE HANDS OF FEDERAL AGENCIES

3098
02:09:15,480 --> 02:09:17,200
ITS CAN BE USED.

3099
02:09:17,200 --> 02:09:20,520
WE DO WANT TO TRY TO MOVE THAT 

3100
02:09:20,520 --> 02:09:22,000
PROCESS ALONG BUT WE WANT TO BE 

3101
02:09:22,000 --> 02:09:24,600
SURE TO INCORPORATE ALL THE 

3102
02:09:24,600 --> 02:09:27,200
FEEDBACK WE HEAR.

3103
02:09:27,200 --> 02:09:31,160
IN NOVEMBER TO DECEMBER 2022 IF 

3104
02:09:31,160 --> 02:09:35,000
THINGS GO SUCCESSFULLY WE'LL 

3105
02:09:35,000 --> 02:09:36,240
HAVE THE APPROVED DRAFT 

3106
02:09:36,240 --> 02:09:36,560
PUBLICATION.

3107
02:09:36,560 --> 02:09:37,840
THAT'S THE TIME LINE AS WE SEE 

3108
02:09:37,840 --> 02:09:43,200
IT NOW BUT WILL CONTINUE TO GIVE

3109
02:09:43,200 --> 02:09:49,440
UPDATES IF THAT CHANGES.

3110
02:09:49,440 --> 02:09:52,200
NOW WE HAVE TIME TO TALK ABOUT 

3111
02:09:52,200 --> 02:09:53,120
FEEDBACK IN THE SURVEY MONKEY 

3112
02:09:53,120 --> 02:09:54,400
SURVEY WE SENT TO MEMBERS.

3113
02:09:54,400 --> 02:09:56,160
WHAT I'D LIKE TO DO IS TALK 

3114
02:09:56,160 --> 02:09:57,560
THROUGH ALL THE FEEDBACK ONCE 

3115
02:09:57,560 --> 02:09:59,000
THROUGH AND THEN AT THE END WE 

3116
02:09:59,000 --> 02:10:03,160
CAN GO BACK AND TALK ABOUT EACH 

3117
02:10:03,160 --> 02:10:05,080
QUESTIONNAIRE SEPARATELY AND GET

3118
02:10:05,080 --> 02:10:06,520
YOUR COMMENTS BUT I WANT YOU TO 

3119
02:10:06,520 --> 02:10:08,880
SEE THE FULL PICTURE BEFORE WE 

3120
02:10:08,880 --> 02:10:09,480
START THE DISCUSSION.

3121
02:10:09,480 --> 02:10:11,400
SO ONE OF THE FIRST QUESTIONS 

3122
02:10:11,400 --> 02:10:13,040
THAT WAS IN THE SURVEY WAS ON 

3123
02:10:13,040 --> 02:10:15,120
THE TITLE OF THE STRATEGIC PLAN 

3124
02:10:15,120 --> 02:10:16,400
AND WE ASKED THE COMMITTEE WHAT 

3125
02:10:16,400 --> 02:10:19,160
YOU'D LIKE TO SEE US USE AS THE 

3126
02:10:19,160 --> 02:10:19,360
TITLE.

3127
02:10:19,360 --> 02:10:22,880
THE CURRENT TITLE IS THE IACC 

3128
02:10:22,880 --> 02:10:24,880
STRATEGIC PLAN FOR AUTISM 

3129
02:10:24,880 --> 02:10:25,800
SPECTRUM DISORDER.

3130
02:10:25,800 --> 02:10:28,680
IN THE OLD, OLDER DAYS IT WAS 

3131
02:10:28,680 --> 02:10:33,200
CALLED THE IACC STRATEGIC PLAN 

3132
02:10:33,200 --> 02:10:33,920
FOR AUTISM SPECTRUM DISORDER 

3133
02:10:33,920 --> 02:10:35,240
RESEARCH BUT THE CARES ACT 

3134
02:10:35,240 --> 02:10:36,720
CHANGED IT AND REQUIRED IT TO 

3135
02:10:36,720 --> 02:10:39,440
ADDRESS ISSUES RELATED TO 

3136
02:10:39,440 --> 02:10:40,600
SERVICES AND SUPPORTS AS WELL AS

3137
02:10:40,600 --> 02:10:42,720
RESEARCH AND BY EXTENSION POLICY

3138
02:10:42,720 --> 02:10:45,200
AND SO IT'S A BROADER STRATEGIC 

3139
02:10:45,200 --> 02:10:45,760
PLAN NOW.

3140
02:10:45,760 --> 02:10:47,240
SO THE LAST NAME WAS THE MIDDLE 

3141
02:10:47,240 --> 02:10:52,840
ON THE SLIDE.

3142
02:10:52,840 --> 02:10:56,360
WE PROPOSED A COUPLE IDEAS, THE 

3143
02:10:56,360 --> 02:11:01,520
TITLE BEFORE OR THE IACC 

3144
02:11:01,520 --> 02:11:02,560
STRATEGIC PLAN FOR AUTISM 

3145
02:11:02,560 --> 02:11:04,120
SPECTRUM STRATEGIC PLAN AND 

3146
02:11:04,120 --> 02:11:06,600
POLICY AND LEFT IT BLANK IN CASE

3147
02:11:06,600 --> 02:11:09,080
SOMEONE WANTED AN ALTERNATIVE.

3148
02:11:09,080 --> 02:11:11,360
WE HAD 28 VOTES TOWARD THE IACC 

3149
02:11:11,360 --> 02:11:12,920
STRATEGIC PLAN FOR AUTISM 

3150
02:11:12,920 --> 02:11:14,120
RESEARCH SERVICES AND POLICY AND

3151
02:11:14,120 --> 02:11:15,600
A FEW VOTES FOR SOME OF THE 

3152
02:11:15,600 --> 02:11:17,080
OTHERS SO IT LOOKS LIKE THE 

3153
02:11:17,080 --> 02:11:17,960
MAJORITY OF THE COMMITTEE WANTS 

3154
02:11:17,960 --> 02:11:19,640
TO GO AHEAD AND CHANGE THE NAME 

3155
02:11:19,640 --> 02:11:22,120
TO MAKE IT MORE CLEAR ABOUT THE 

3156
02:11:22,120 --> 02:11:37,080
SCOPE OF THIS STRATEGIC PLAN.

3157
02:11:37,080 --> 02:11:38,360
SOME OF THE GENERAL OVERVIEW 

3158
02:11:38,360 --> 02:11:40,120
FROM THE FEEDBACK AND FOR ANYONE

3159
02:11:40,120 --> 02:11:44,800
WATCHING ONLINE IF YOU WANT TO 

3160
02:11:44,800 --> 02:11:47,240
SEE A SUMMARY OF THE THEMES THAT

3161
02:11:47,240 --> 02:11:49,400
DOCUMENT IS ONLINE AS WELL AS 

3162
02:11:49,400 --> 02:11:51,200
THE FULL TEXT OF THE INFORMATION

3163
02:11:51,200 --> 02:11:53,280
WE RECEIVED.

3164
02:11:53,280 --> 02:11:55,240
SO THE GENERAL COMMENTS WE 

3165
02:11:55,240 --> 02:11:57,800
RECEIVED INCLUDED AN INCREASED 

3166
02:11:57,800 --> 02:12:00,040
NEED FOR INCLUSION IN RESEARCH 

3167
02:12:00,040 --> 02:12:01,800
AS WELL AS INCLUDING 

3168
02:12:01,800 --> 02:12:05,760
COMMUNITY-BASED PARTICIPATORY 

3169
02:12:05,760 --> 02:12:06,000
RESEARCH.

3170
02:12:06,000 --> 02:12:07,480
ADDRESSING DISPARITIES, 

3171
02:12:07,480 --> 02:12:09,640
ADDRESSING THE ENTIRE SPECTRUM 

3172
02:12:09,640 --> 02:12:12,280
AND THE ENTIRE LIFE SPAN, 

3173
02:12:12,280 --> 02:12:15,200
EMPHASIZING ACTIONS AND 

3174
02:12:15,200 --> 02:12:17,800
SOLUTIONS WHERE POSSIBLE, 

3175
02:12:17,800 --> 02:12:18,840
EMPHASIZING COMMITMENT TO EQUITY

3176
02:12:18,840 --> 02:12:22,400
AND ELIMINATION OF STIGMA AND 

3177
02:12:22,400 --> 02:12:23,680
DISCRIMINATION AND THERE WERE 

3178
02:12:23,680 --> 02:12:25,480
SOME COMMENTS ON LANGUAGE 

3179
02:12:25,480 --> 02:12:26,920
CONSIDERATIONS WHICH WE 

3180
02:12:26,920 --> 02:12:31,240
SUMMARIZED AS MOVING AWAY FROM 

3181
02:12:31,240 --> 02:12:33,200
DEFICITS-BASED LANGUAGE AND TO 

3182
02:12:33,200 --> 02:12:35,200
MORE INCLUSIVE LANGUAGE AND 

3183
02:12:35,200 --> 02:12:37,760
BALANCING THE IMPORTANCE OF MAIN

3184
02:12:37,760 --> 02:12:39,200
ACCURACY WHEN REFERRING TO 

3185
02:12:39,200 --> 02:12:41,920
ISSUES THAT MAY BE SCIENTIFIC, 

3186
02:12:41,920 --> 02:12:55,600
MEDICAL OR CLINICAL IN NATURE.

3187
02:12:55,600 --> 02:12:59,720
TO SHARE THEMES FROM DIAGNOSIS, 

3188
02:12:59,720 --> 02:13:04,360
BIOMARKERS, UNIVERSAL SCREENING 

3189
02:13:04,360 --> 02:13:09,200
AND ACCESSIBILITY OF SERVICES, 

3190
02:13:09,200 --> 02:13:11,200
DISPARITIES, DETECTION AND 

3191
02:13:11,200 --> 02:13:17,800
INTERVENTIONS AND TELEAHEALTH  

3192
02:13:17,800 --> 02:13:20,960
HEALTH APPROACHES AND MILESTONE 

3193
02:13:20,960 --> 02:13:24,200
TRACKING AND PRACTICE, MEDICAL 

3194
02:13:24,200 --> 02:13:27,800
PRACTITIONER TRAINING, CAREGIVER

3195
02:13:27,800 --> 02:13:31,200
ENGAGEMENT AND SYSTEMS 

3196
02:13:31,200 --> 02:13:35,600
NAVIGATION.

3197
02:13:35,600 --> 02:13:37,800
IN QUESTION 2 FOCUS ON THE 

3198
02:13:37,800 --> 02:13:42,000
BIOLOGY OF AUTISM, THE THEMES 

3199
02:13:42,000 --> 02:13:44,600
THAT WE WERE ABLE TO PULL OUT 

3200
02:13:44,600 --> 02:13:51,000
WERE BIOLOGY ACROSS THE LIFE 

3201
02:13:51,000 --> 02:13:54,560
SPAN, CO-OCCURRING CONDITIONS, 

3202
02:13:54,560 --> 02:13:57,760
COGS MISSION AND BEHAVIOR, SEX 

3203
02:13:57,760 --> 02:14:01,520
DIFFERENCES INCLUDING THE FEMALE

3204
02:14:01,520 --> 02:14:02,880
PROTECTIVE EFFECT, HUMAN NEURO 

3205
02:14:02,880 --> 02:14:05,800
IMAGING STUDIES, LONGITUDINAL 

3206
02:14:05,800 --> 02:14:09,120
STUDIES, TRANSLATIONAL STUDIES, 

3207
02:14:09,120 --> 02:14:14,800
THE MICROBIOME AND THE ETHICS OF

3208
02:14:14,800 --> 02:14:18,240
HUMAN STUDIES.

3209
02:14:18,240 --> 02:14:20,760
OWN QUESTION 3 ON GENETIC AND 

3210
02:14:20,760 --> 02:14:23,640
ENVIRONMENTAL FACTORS SOME 

3211
02:14:23,640 --> 02:14:26,600
THEMES WERE FACTS ON EPIGENETIC 

3212
02:14:26,600 --> 02:14:28,360
AND ENVIRONMENTAL FACTORS, LARGE

3213
02:14:28,360 --> 02:14:32,400
GENETIC AND EPIGENETIC STUDIES, 

3214
02:14:32,400 --> 02:14:35,240
INCLUSION OF DIVERSE POPULATIONS

3215
02:14:35,240 --> 02:14:40,000
IN GENETIC STUDIES, DEEP ARE 

3216
02:14:40,000 --> 02:14:42,600
UNDERSTANDING OF GENETIC 

3217
02:14:42,600 --> 02:14:45,080
VARIANCE, COMMON FACTORS THAT 

3218
02:14:45,080 --> 02:14:47,200
IMPACT AUTISM AND CO-OCCURRING 

3219
02:14:47,200 --> 02:14:48,640
CONDITIONS AND MODIFIABLE 

3220
02:14:48,640 --> 02:14:51,880
ENVIRONMENTAL FACTORS INCLUDING 

3221
02:14:51,880 --> 02:14:54,200
MATERNAL DIET, INFLUENCE OF 

3222
02:14:54,200 --> 02:14:55,880
GENETIC FACTORS ON RESPONSE TO 

3223
02:14:55,880 --> 02:15:02,280
MEDICATIONS AND INTERVENTIONS.

3224
02:15:02,280 --> 02:15:04,520
ON THEMES THAT WERE PULLED FROM 

3225
02:15:04,520 --> 02:15:08,320
QUESTION 4 ON INTERVENTIONS, WE 

3226
02:15:08,320 --> 02:15:11,160
SAW THAT THERE WAS INTEREST IN 

3227
02:15:11,160 --> 02:15:12,280
MEDICAL, BEHAVIORAL AND 

3228
02:15:12,280 --> 02:15:15,120
EDUCATIONAL AND COMPLIMENTARY 

3229
02:15:15,120 --> 02:15:15,840
APPROACHES.

3230
02:15:15,840 --> 02:15:18,440
INTERVENTIONS THAT FOCUS ON I AM

3231
02:15:18,440 --> 02:15:20,720
PROVING THE QUALITY OF LIFE, 

3232
02:15:20,720 --> 02:15:23,160
PERSONALIZED AND CULTURALLY 

3233
02:15:23,160 --> 02:15:27,120
COMPETENT INTERVENTIONS, 

3234
02:15:27,120 --> 02:15:27,680
NATURALISTIC DEVELOPMENTAL 

3235
02:15:27,680 --> 02:15:31,200
BEHAVIORAL INTERVENTIONS, 

3236
02:15:31,200 --> 02:15:33,200
PREEMPTIVE INTERVENTION FOR 

3237
02:15:33,200 --> 02:15:35,000
CHALLENGING BEHAVIORS, PARENTS 

3238
02:15:35,000 --> 02:15:37,600
AND CAREGIVER MEDIATED 

3239
02:15:37,600 --> 02:15:39,000
INTERVENTIONS, COMMUNICATION 

3240
02:15:39,000 --> 02:15:41,840
TOOLS, ALTERNATIVE AND AUGMENTED

3241
02:15:41,840 --> 02:15:43,800
COMMUNICATION, AAC, OUTCOME 

3242
02:15:43,800 --> 02:15:45,200
MEASURES AND BIOMARKERS, 

3243
02:15:45,200 --> 02:15:46,560
COMMUNITY ACCESS TO INFORMATION 

3244
02:15:46,560 --> 02:15:51,160
ABOUT SAFETY AND EFFICACY OF 

3245
02:15:51,160 --> 02:15:52,120
APPROACHES, TELEHEALTH 

3246
02:15:52,120 --> 02:15:55,480
APPROACHES AND TECHNOLOGY-BASED 

3247
02:15:55,480 --> 02:16:00,200
INTERVENTIONS.

3248
02:16:00,200 --> 02:16:01,920
ON QUESTION 5 THE THEMES WERE 

3249
02:16:01,920 --> 02:16:03,800
SCALING AND IMPLEMENTING 

3250
02:16:03,800 --> 02:16:06,400
INTERVENTIONS, HEALTH SYSTEM 

3251
02:16:06,400 --> 02:16:07,200
INTEGRATION, COMMUNITY-BASED 

3252
02:16:07,200 --> 02:16:09,160
SERVICE DELIVERY, IDENTIFYING 

3253
02:16:09,160 --> 02:16:13,360
AND REDUCING DISPARITIES, FAMILY

3254
02:16:13,360 --> 02:16:17,080
DYNAMICS SUPPORT AND ENGAGEMENT,

3255
02:16:17,080 --> 02:16:19,640
ALSO PARENTS AND SIBLING 

3256
02:16:19,640 --> 02:16:21,640
PERSPECTIVES, SERVICES WORKFORCE

3257
02:16:21,640 --> 02:16:25,800
TRAINING AND DEVELOPMENT, 

3258
02:16:25,800 --> 02:16:27,200
PERSON-CENTERED SERVICES, 

3259
02:16:27,200 --> 02:16:34,200
SYSTEMS NAVIGATION, MEDICARE, 

3260
02:16:34,200 --> 02:16:35,160
MEDICAID AND SOCIAL SERVICE 

3261
02:16:35,160 --> 02:16:35,840
POLICY.

3262
02:16:35,840 --> 02:16:39,200
ON QUESTION 6 ON LIFE SPAN, SOME

3263
02:16:39,200 --> 02:16:43,200
THEMES WERE ADULT DIAGNOSIS, 

3264
02:16:43,200 --> 02:16:46,400
TRANSITION AGED YOUTH AND YOUNG 

3265
02:16:46,400 --> 02:16:46,640
OUTCOMES.

3266
02:16:46,640 --> 02:16:50,000
EMPLOYMENT, HOUSING, SAFETY, 

3267
02:16:50,000 --> 02:16:54,000
FAMILY DYNAMICS AND TRAUMA, 

3268
02:16:54,000 --> 02:16:54,600
COMMUNITY INCLUSION, AGING 

3269
02:16:54,600 --> 02:16:56,960
AUTISTIC ADULTS AND HOW ISSUES I

3270
02:16:56,960 --> 02:16:59,200
JUST LISTED ACT AS SOCIAL 

3271
02:16:59,200 --> 02:17:09,840
DETERMINATES OF HEALTH.

3272
02:17:09,840 --> 02:17:11,320
ON QUESTION 7 AND IT SOUNDS LIKE

3273
02:17:11,320 --> 02:17:15,160
THERE'S CONFUSION ABOUT 

3274
02:17:15,160 --> 02:17:15,480
SURVEILLANCE.

3275
02:17:15,480 --> 02:17:16,880
WE'RE NOT TALKING ABOUT 

3276
02:17:16,880 --> 02:17:17,640
SURVEILLING PEOPLE IN THEIR 

3277
02:17:17,640 --> 02:17:23,000
HOMES OR ANYTHING LIKE THAT.

3278
02:17:23,000 --> 02:17:25,600
THAT'S EPIDEMIOLOGY AND LOOKING 

3279
02:17:25,600 --> 02:17:26,480
AT PREVALENCE.

3280
02:17:26,480 --> 02:17:29,000
SYSTEMS THAT TRACK AUTISM 

3281
02:17:29,000 --> 02:17:33,200
PREVALENCE, PUBLIC-PRIVATE 

3282
02:17:33,200 --> 02:17:35,200
PARTNERSHIPS, DATA BANKS AND BIO

3283
02:17:35,200 --> 02:17:38,400
BANKS, PRIVATE GUIDELINES, ADULT

3284
02:17:38,400 --> 02:17:39,600
PREVALENCE STUDIES, COMMUNITY 

3285
02:17:39,600 --> 02:17:47,000
OUTREACH AND DISSEMINATION OF 

3286
02:17:47,000 --> 02:17:49,440
INFORMATION, RESEARCH AND CLINIC

3287
02:17:49,440 --> 02:17:50,400
RESOURCE DEVELOPMENT AND SUPPORT

3288
02:17:50,400 --> 02:17:52,840
FOR EARLY CAREER RESEARCHERS.

3289
02:17:52,840 --> 02:17:54,200
THERE WERE TWO SPECIAL TOPICS WE

3290
02:17:54,200 --> 02:17:56,680
ASKED ABOUT WHICH WERE COVID-19 

3291
02:17:56,680 --> 02:17:57,200
AND DISPARITY.

3292
02:17:57,200 --> 02:17:59,440
SO ON COVID-19, THE FEEDBACK WE 

3293
02:17:59,440 --> 02:18:02,760
RECEIVED WAS THAT YOU'D LIKE TO 

3294
02:18:02,760 --> 02:18:04,520
SEE A SECTION ON COVID-19 COVER 

3295
02:18:04,520 --> 02:18:06,680
HOW WE'RE GOING TO MITIGATE 

3296
02:18:06,680 --> 02:18:09,160
INCREASED RISK OF COVID-19 IN 

3297
02:18:09,160 --> 02:18:11,200
AUTISTIC INDIVIDUALS, WHAT THE 

3298
02:18:11,200 --> 02:18:12,200
IMPACT HAS BEEN OF DISRUPTIONS 

3299
02:18:12,200 --> 02:18:15,440
IN SCHOOL, ACCESS TO 

3300
02:18:15,440 --> 02:18:17,680
INTERVENTIONS AND SERVICES, 

3301
02:18:17,680 --> 02:18:19,720
MENTAL HEALTH SUPPORTS, THE 

3302
02:18:19,720 --> 02:18:21,640
IMPACT OF SWITCHING TO REMOTE 

3303
02:18:21,640 --> 02:18:23,200
SCHOOL WORK HEALTH CARE AND 

3304
02:18:23,200 --> 02:18:27,200
SERVICES AND THE IMPACT OF THE 

3305
02:18:27,200 --> 02:18:27,840
PANDEMIC ON THE AUTISM RESEARCH 

3306
02:18:27,840 --> 02:18:33,800
COMMUNITY.

3307
02:18:33,800 --> 02:18:36,560
THE LAST TOPIC DISCUSSED WAS 

3308
02:18:36,560 --> 02:18:38,920
DISPARITIES AND SOME FEEDBACK 

3309
02:18:38,920 --> 02:18:42,720
WAS YOU'D LIKE TO SEE A FOCUS ON

3310
02:18:42,720 --> 02:18:43,240
REDUCING DISPARITIES IN 

3311
02:18:43,240 --> 02:18:45,200
DIAGNOSIS AND ACCESS TO SERVICES

3312
02:18:45,200 --> 02:18:46,680
AND SUPPORTS INCLUDING THE 

3313
02:18:46,680 --> 02:18:52,600
CATEGORIES OF RACE AND 

3314
02:18:52,600 --> 02:18:55,200
ETHNICITY, GENDER ORIENTATION 

3315
02:18:55,200 --> 02:18:58,840
AND IDENTITY AND SOCIO ECONOMIC 

3316
02:18:58,840 --> 02:18:59,800
STATUS AND GEOGRAPHIC LOCATION 

3317
02:18:59,800 --> 02:19:01,600
AND WOULD LIKE TO SEE INCREASED 

3318
02:19:01,600 --> 02:19:03,400
INCLUSION AND ENGAGEMENT WITH 

3319
02:19:03,400 --> 02:19:06,600
UNDER SERVED COMMUNITIES, 

3320
02:19:06,600 --> 02:19:07,840
INCREASING DIVERSITY IN RESEARCH

3321
02:19:07,840 --> 02:19:09,960
AND CLINICAL WORKFORCE AND ALSO 

3322
02:19:09,960 --> 02:19:11,200
INCREASING CULTURAL COMPETENCY 

3323
02:19:11,200 --> 02:19:15,200
OF EDUCATORS, MEDICAL 

3324
02:19:15,200 --> 02:19:15,800
PRACTITIONERS AND OTHER SERVICE 

3325
02:19:15,800 --> 02:19:18,680
PROVIDERS.

3326
02:19:18,680 --> 02:19:21,600
SO I WILL STOP THERE AND GO BACK

3327
02:19:21,600 --> 02:19:27,200
TO WHERE WE STARTED AND LET YOU 

3328
02:19:27,200 --> 02:19:32,400
ALL HAVE TIME TO DISCUSS WHAT 

3329
02:19:32,400 --> 02:19:36,240
WAS SHARED.

3330
02:19:36,240 --> 02:19:39,200
DOES ANYONE HAVE COMMENTS AND 

3331
02:19:39,200 --> 02:19:40,560
HOPEFULLY YOU CAN BRING THINGS 

3332
02:19:40,560 --> 02:19:41,000
UP.

3333
02:19:41,000 --> 02:19:43,600
>> I SAW A COUPLE THINGS I THINK

3334
02:19:43,600 --> 02:19:45,600
THAT ARE PAINFULLY MISSING AND 

3335
02:19:45,600 --> 02:19:47,200
HOPE WE CAN ADDRESS THIS.

3336
02:19:47,200 --> 02:19:56,400
ONE IS TRAUMA-INFORMED CARE.

3337
02:19:56,400 --> 02:20:00,000
WE NEED MORE.

3338
02:20:00,000 --> 02:20:01,560
I WOULD SUGGEST SOMETHING 

3339
02:20:01,560 --> 02:20:06,120
RELATED TO PAY FOR SUPPORT 

3340
02:20:06,120 --> 02:20:10,200
PERSONS IN TERMS OF POLICY I 

3341
02:20:10,200 --> 02:20:12,600
WOULD ALSO SUGGEST IN TERMS OF 

3342
02:20:12,600 --> 02:20:17,560
COMMUNITY-BASED SERVICES WE 

3343
02:20:17,560 --> 02:20:18,920
ACKNOWLEDGE OR RECOGNIZE THERE 

3344
02:20:18,920 --> 02:20:21,200
ARE VERY FEW AUTISTIC ADULTS WHO

3345
02:20:21,200 --> 02:20:22,680
DO NOT REQUIRE SOME LEVEL OF 

3346
02:20:22,680 --> 02:20:24,200
SUPPORT BUT THAT COULD BE 

3347
02:20:24,200 --> 02:20:29,200
MONETIZED AND INDIVIDUALIZED 

3348
02:20:29,200 --> 02:20:31,000
BASED ON INDIVIDUAL NEEDS AND 

3349
02:20:31,000 --> 02:20:32,560
LASTLY THE OTHER NOTE I TOOK 

3350
02:20:32,560 --> 02:20:35,040
THAT I THINK IS A TOPIC WE WANT 

3351
02:20:35,040 --> 02:20:38,120
TO DISCUSS IS THE INTENSE 

3352
02:20:38,120 --> 02:20:41,800
EFFORTS AND DESIRE TO LOOK AT 

3353
02:20:41,800 --> 02:20:47,240
GENDER AS A BINARY PROBLEM FORE

3354
02:20:47,240 --> 02:20:49,680
FORE -- FOR STUDY IN RESEARCH.

3355
02:20:49,680 --> 02:20:51,200
MY CONCERN IS AS A SOCIAL WORKER

3356
02:20:51,200 --> 02:20:53,880
IN THE FIELD IS WE'RE FINDING 

3357
02:20:53,880 --> 02:20:59,760
AUTISTIC MALES WHO PRESENT LESS 

3358
02:20:59,760 --> 02:21:05,440
EXTERNALLY WHO PRESENT MORE 

3359
02:21:05,440 --> 02:21:08,880
UNDER WHAT WE CALL THE FEMALE 

3360
02:21:08,880 --> 02:21:09,800
PHENOTYPE ARE LACKING THE SAME 

3361
02:21:09,800 --> 02:21:14,600
SUPPORTS AND SERVICES AS WE 

3362
02:21:14,600 --> 02:21:15,280
PROJECTED FEMALES EXPERIENCE.

3363
02:21:15,280 --> 02:21:20,080
WHEN WE LOOK AT GENDER WE HAVE 

3364
02:21:20,080 --> 02:21:24,840
NOT YET EXAMINED THE RESEARCH IN

3365
02:21:24,840 --> 02:21:26,720
THIS SUBSET OF AUTISTIC MALES IS

3366
02:21:26,720 --> 02:21:28,400
AND I'M CONCERNED PROJECTING 

3367
02:21:28,400 --> 02:21:30,760
THIS IS EXCLUSIVELY A MALE OR 

3368
02:21:30,760 --> 02:21:34,200
FEMALE CHALLENGE IS GOING TO 

3369
02:21:34,200 --> 02:21:35,800
MARGINALIZE YET ANOTHER SUBGROUP

3370
02:21:35,800 --> 02:21:36,320
OF AUTISTIC PEOPLE.

3371
02:21:36,320 --> 02:21:39,680
I THINK WHEN WE TALK ABOUT 

3372
02:21:39,680 --> 02:21:44,200
GENDER, MAYBE WE TO FOCUS MORE 

3373
02:21:44,200 --> 02:21:48,200
ON THE PRESENTATION OF 

3374
02:21:48,200 --> 02:21:51,600
INTERNALIZED VERSUS 

3375
02:21:51,600 --> 02:21:54,000
EXTERNALALIZED IN LIEU OF FEMALE

3376
02:21:54,000 --> 02:21:59,240
AND MALE EXCLUSIVELY AND LEAVES 

3377
02:21:59,240 --> 02:22:02,760
LITTLE ROOM FOR GENDER 

3378
02:22:02,760 --> 02:22:05,200
NON-CONFORMING AND OTHER GENDER 

3379
02:22:05,200 --> 02:22:05,600
MINORITY.

3380
02:22:05,600 --> 02:22:10,800
OVERALL, I THINK WE COVERED JUST

3381
02:22:10,800 --> 02:22:26,280
ABOUT EVERYTHING AND MAYBE I CAN

3382
02:22:26,280 --> 02:22:27,760
HELP COLLABORATE SOMETHING FOR 

3383
02:22:27,760 --> 02:22:29,640
THE COMMITTEE IF WE WANT TO WORK

3384
02:22:29,640 --> 02:22:30,320
ON THAT.

3385
02:22:30,320 --> 02:22:32,080
>> THANK YOU FOR SHARING THE 

3386
02:22:32,080 --> 02:22:32,360
COMMENTS.

3387
02:22:32,360 --> 02:22:34,640
BY THE WAY, WE ARE TAKING NOTES 

3388
02:22:34,640 --> 02:22:35,400
AND WANTING TO COLLECT 

3389
02:22:35,400 --> 02:22:36,720
ADDITIONAL FEEDBACK DURING THE 

3390
02:22:36,720 --> 02:22:37,160
SESSION.

3391
02:22:37,160 --> 02:22:39,160
WE'RE TAKING NOTE OF WHAT YOU'RE

3392
02:22:39,160 --> 02:22:41,200
TELLING US AND IF THERE ARE 

3393
02:22:41,200 --> 02:22:42,040
SPECIFIC RESOURCES YOU WANT US 

3394
02:22:42,040 --> 02:22:45,200
TO HAVE FEEL FREE TO SEND THOSE 

3395
02:22:45,200 --> 02:22:50,560
TO US.

3396
02:22:50,560 --> 02:22:53,080
>> I WANT TO BACK UP WHAT DENA 

3397
02:22:53,080 --> 02:22:54,520
IS SAYING.

3398
02:22:54,520 --> 02:22:56,880
I WANT TO BACK UP WHAT SHE'S 

3399
02:22:56,880 --> 02:22:59,400
SAYING AND -- SORRY, MY CAMERA 

3400
02:22:59,400 --> 02:23:00,720
WON'T TURN ON.

3401
02:23:00,720 --> 02:23:02,720
SOMETIMES IT'S PRESUMPTIVE STILL

3402
02:23:02,720 --> 02:23:11,200
TO ASSUME THAT DISPARITIES IN 

3403
02:23:11,200 --> 02:23:13,360
DIAGNOSED ARE CALLED BY SOME OF 

3404
02:23:13,360 --> 02:23:17,640
THESE ISSUES AND PRACTITIONERS 

3405
02:23:17,640 --> 02:23:22,720
AND PARENTS VIEW AND INTERPRET 

3406
02:23:22,720 --> 02:23:27,200
TRAITS AND BEHAVIORS.

3407
02:23:27,200 --> 02:23:29,400
THERE ARE PEOPLE WHO WOULD HAVE 

3408
02:23:29,400 --> 02:23:34,120
CLEARLY MET THE DSM CRITERIA FOR

3409
02:23:34,120 --> 02:23:37,760
DIAGNOSIS WHO HAD ALL THE 

3410
02:23:37,760 --> 02:23:39,800
STEREOTYPICAL BEHAVIOR BUT WAS 

3411
02:23:39,800 --> 02:23:42,480
NOT RECOGNIZED OF AUTISM BECAUSE

3412
02:23:42,480 --> 02:23:43,360
PUBLIC PERCEPTION THAT AUTISM 

3413
02:23:43,360 --> 02:23:45,120
SOMETHING YOU SEE IN BOYS.

3414
02:23:45,120 --> 02:23:51,160
IT WOULD BE WORTH BEING MORE 

3415
02:23:51,160 --> 02:23:53,680
OPEN DEFINING THE SCOPE OF 

3416
02:23:53,680 --> 02:23:57,120
RESEARCH ON GENDER DIFFERENCES 

3417
02:23:57,120 --> 02:24:02,040
SO WE INCLUDE THE POSSIBILITY OF

3418
02:24:02,040 --> 02:24:04,040
DIFFERENCES BASED IN OTHER 

3419
02:24:04,040 --> 02:24:05,720
PEOPLE'S PERCEPTIONS IN 

3420
02:24:05,720 --> 02:24:07,840
DIFFERENT WAYS PEOPLE ARE 

3421
02:24:07,840 --> 02:24:11,160
SOCIALIZED AND NON-BIOLOGICAL 

3422
02:24:11,160 --> 02:24:12,600
DIFFERENCES AS WELL.

3423
02:24:12,600 --> 02:24:14,440
>> THANK YOU, SAM.

3424
02:24:14,440 --> 02:24:15,160
LIKEWISE IF YOU HAVE ANY 

3425
02:24:15,160 --> 02:24:19,200
RESOURCES ON THAT, FEEL FREE TO 

3426
02:24:19,200 --> 02:24:19,480
SEND THEM.

3427
02:24:19,480 --> 02:24:25,120
JOSH.

3428
02:24:25,120 --> 02:24:26,560
YOU'RE ON MUTE.

3429
02:24:26,560 --> 02:24:29,160
>> I APPRECIATE YOU POINTING 

3430
02:24:29,160 --> 02:24:31,000
THIS OUT FROM A GENDER AREAS AND

3431
02:24:31,000 --> 02:24:32,600
OTHER AREAS AND IT'S IMPORTANT 

3432
02:24:32,600 --> 02:24:33,200
WE RECOGNIZE IN THE STRATEGIC 

3433
02:24:33,200 --> 02:24:36,080
PLAN WHERE WE'RE ASKING FOR 

3434
02:24:36,080 --> 02:24:39,200
QUESTIONS TO BE ANSWERED LIKE 

3435
02:24:39,200 --> 02:24:45,200
THE ISSUE OF GENDER DISPARITIES 

3436
02:24:45,200 --> 02:24:52,080
AND ALSO NEEDING TO CONSIDER 

3437
02:24:52,080 --> 02:24:54,400
MORE THAN JUST THE BINARY ISSUE 

3438
02:24:54,400 --> 02:24:56,920
OF GENDER.

3439
02:24:56,920 --> 02:24:59,200
IT'S AN ISSUE BEING WRESTLED 

3440
02:24:59,200 --> 02:25:01,200
WITH THROUGH BIOMEDICAL 

3441
02:25:01,200 --> 02:25:01,440
RESEARCH.

3442
02:25:01,440 --> 02:25:04,800
I'LL POINT OUT A FEW ARTICLES IN

3443
02:25:04,800 --> 02:25:05,800
THE SUMMARY AS ADVANCES 

3444
02:25:05,800 --> 02:25:07,200
DISCUSSION THAT DEAL WITH ISSUES

3445
02:25:07,200 --> 02:25:09,160
OF GENDER DISPARITY.

3446
02:25:09,160 --> 02:25:13,560
SO MAKING SURE THAT WE RECOGNIZE

3447
02:25:13,560 --> 02:25:16,040
WHAT WE'RE LEARNING AND ARE 

3448
02:25:16,040 --> 02:25:18,080
LEARNING AS THE TWO PREVIOUS 

3449
02:25:18,080 --> 02:25:18,640
SPEAKERS DISCUSSED WILL BE 

3450
02:25:18,640 --> 02:25:19,320
IMPORTANT TO THE STRATEGIC PLAN.

3451
02:25:19,320 --> 02:25:23,000
I HAVE A QUESTION FOR DENA AND 

3452
02:25:23,000 --> 02:25:24,400
MAYBE ALSO FOR OTHERS 

3453
02:25:24,400 --> 02:25:25,200
PARTICULARLY SOME SCIENTISTS ON 

3454
02:25:25,200 --> 02:25:27,040
THE CALL WHO HAVE DONE THE 

3455
02:25:27,040 --> 02:25:28,680
TREATMENT RESEARCH OF WHAT IS 

3456
02:25:28,680 --> 02:25:31,200
MEANT BY TRAUMA INFORMED CARE IN

3457
02:25:31,200 --> 02:25:33,200
THIS PARTICULAR CASE.

3458
02:25:33,200 --> 02:25:35,200
IT'S A REALLY IMPORTANT 

3459
02:25:35,200 --> 02:25:37,040
PERSPECTIVE IN TERMS OF MAKING 

3460
02:25:37,040 --> 02:25:38,400
SURE THAT CARE IS INFORMED BY 

3461
02:25:38,400 --> 02:25:41,320
THE FACT THAT MANY PEOPLE AND 

3462
02:25:41,320 --> 02:25:42,520
MANY AUTISTIC INDIVIDUALS HAVE 

3463
02:25:42,520 --> 02:25:45,200
UNDER GONE TRAUMA BUT IN MANY 

3464
02:25:45,200 --> 02:25:50,440
CASES IT DOESN'T OFTEN MEAN AN 

3465
02:25:50,440 --> 02:25:52,080
EVIDENCE-BASED APPROACH WHEREAS 

3466
02:25:52,080 --> 02:25:53,760
SOMETHING MORE SPECIFIC MIGHT BE

3467
02:25:53,760 --> 02:25:55,120
SOMETHING BETTER.

3468
02:25:55,120 --> 02:26:01,920
MY QUESTION FOR YOU, DENA IS 

3469
02:26:01,920 --> 02:26:02,880
WHETHER IT'S APPROPRIATE WAYS TO

3470
02:26:02,880 --> 02:26:04,040
DELIVER TRAUMA MANY OF BASED 

3471
02:26:04,040 --> 02:26:07,200
CARE OR WHETHER YOU'RE AWARE OF 

3472
02:26:07,200 --> 02:26:08,200
STUDIES THAT DEMONSTRATE THOSE 

3473
02:26:08,200 --> 02:26:15,160
APPROPRIATE PROCEDURES TO DO SO 

3474
02:26:15,160 --> 02:26:18,320
AND WE'LL BE RECOMMENDING THOSE.

3475
02:26:18,320 --> 02:26:19,800
THERE MAY BE OTHERS THAT WANT TO

3476
02:26:19,800 --> 02:26:20,840
RESPOND TO THAT QUESTION AS 

3477
02:26:20,840 --> 02:26:21,160
WELL.

3478
02:26:21,160 --> 02:26:23,080
>> MY SUGGESTION IN TERMS OF THE

3479
02:26:23,080 --> 02:26:27,200
RESEARCH IS WE GO A STEP BEFORE 

3480
02:26:27,200 --> 02:26:29,480
THAT WHICH IS THE REALITY THAT 

3481
02:26:29,480 --> 02:26:32,200
IN MUCH OF THE TRAUMA LITERATURE

3482
02:26:32,200 --> 02:26:36,000
WE'RE CONTINUING TO REJECT THE 

3483
02:26:36,000 --> 02:26:41,760
IDEA OF THE LOWER-TRADE TRAUMA 

3484
02:26:41,760 --> 02:26:44,720
OF CONSTANT PROOF OF WORTHINESS 

3485
02:26:44,720 --> 02:26:50,120
FOR SERVICES AND SOCIAL 

3486
02:26:50,120 --> 02:26:50,800
ISOLATION, CUMULATIVELY MEET THE

3487
02:26:50,800 --> 02:26:57,200
SAME FOR TRAUMA AS A BIG "T" 

3488
02:26:57,200 --> 02:26:58,640
TRAUMA FOR WELFARE.

3489
02:26:58,640 --> 02:27:00,800
I DON'T THINK WE HAVE THE 

3490
02:27:00,800 --> 02:27:01,600
FOUNDATIONAL INFORMATION.

3491
02:27:01,600 --> 02:27:04,800
THERE'S VERY FEW STUDIES, I'LL 

3492
02:27:04,800 --> 02:27:07,760
PULL OUT WHAT I HAVE THAT LOOK 

3493
02:27:07,760 --> 02:27:10,400
AT HOW AUTISTIC PEOPLE 

3494
02:27:10,400 --> 02:27:11,200
EXPERIENCE TRAUMA.

3495
02:27:11,200 --> 02:27:13,960
WE CAN'T BUILD TRAUMA INFORMED 

3496
02:27:13,960 --> 02:27:14,920
INTERVENTIONS IF WE DON'T 

3497
02:27:14,920 --> 02:27:15,840
EMBRACE THAT.

3498
02:27:15,840 --> 02:27:18,240
>> THAT'S A HELPFUL 

3499
02:27:18,240 --> 02:27:18,800
CLARIFICATION.

3500
02:27:18,800 --> 02:27:21,160
I'LL POINT OUT THOSE STUDIES ARE

3501
02:27:21,160 --> 02:27:22,240
HAPPENING IN OTHER AREAS.

3502
02:27:22,240 --> 02:27:24,000
A NUMBER OF STUDIES ARE COMING 

3503
02:27:24,000 --> 02:27:26,960
OUT NOW ABOUT THE CUMULATIVE 

3504
02:27:26,960 --> 02:27:30,400
AFFECT OF MICROAGGRESSIONS AND 

3505
02:27:30,400 --> 02:27:32,960
OTHER LESS CHRONIC OR LESS 

3506
02:27:32,960 --> 02:27:35,200
SEVERE -- MORE CHRONIC BUT LESS 

3507
02:27:35,200 --> 02:27:36,920
SEVERE FORMS OF TRAUMA WITH 

3508
02:27:36,920 --> 02:27:38,640
REGARD TO RACE AND ETHNICITY.

3509
02:27:38,640 --> 02:27:41,960
BUILDING ON THOSE METHODS THAT 

3510
02:27:41,960 --> 02:27:47,200
HAVE BEEN USED TO EXPLORE THE 

3511
02:27:47,200 --> 02:27:49,600
RELATIONSHIP BETWEEN AS YOU 

3512
02:27:49,600 --> 02:27:57,800
POINT OUT THE AFFECTS.

3513
02:27:57,800 --> 02:28:01,200
>> I THINK WE EXPERIENCE A FORM 

3514
02:28:01,200 --> 02:28:03,680
OF PTSD UNIQUE IN THAT FOR ME 

3515
02:28:03,680 --> 02:28:05,720
IT'S AIRPORTS.

3516
02:28:05,720 --> 02:28:09,200
I'VE HAD SO MANY DENIALS OF 

3517
02:28:09,200 --> 02:28:10,440
ACCOMMODATION SUPPORTS IN 

3518
02:28:10,440 --> 02:28:14,800
AIRPORTS THAT EVEN THOUGH I HAVE

3519
02:28:14,800 --> 02:28:23,200
PAID FOR CLEAR AND HAVE TSA 

3520
02:28:23,200 --> 02:28:27,640
PRE-CHECK I HAVE A PTSD REPORT 

3521
02:28:27,640 --> 02:28:30,640
AND I'M NOT SURE THE 

3522
02:28:30,640 --> 02:28:32,600
LOW-GRADE -- I HATE TO CALL IT 

3523
02:28:32,600 --> 02:28:34,600
THAT BECAUSE IT'S AN INTENSE 

3524
02:28:34,600 --> 02:28:39,800
EXPERIENCE BUT THE KIND OF 

3525
02:28:39,800 --> 02:28:48,000
CUMULATIVE MICROAGGRESSION AND 

3526
02:28:48,000 --> 02:28:54,600
VOON A WORD  -- EVEN A WORD AND 

3527
02:28:54,600 --> 02:28:57,160
HOW IT'S PROCESSED THROUGH THE 

3528
02:28:57,160 --> 02:28:59,200
LENS OF AN AUTISM EXPERIENCE 

3529
02:28:59,200 --> 02:29:03,200
BEFORE WE CAN LOOK AT 

3530
02:29:03,200 --> 02:29:05,440
INVENTIONS.

3531
02:29:05,440 --> 02:29:09,000
THERE'S WORK BE DONE.

3532
02:29:09,000 --> 02:29:10,800
>> THIS IS SAM.

3533
02:29:10,800 --> 02:29:13,600
IN ADDITION TO RESEARCHING 

3534
02:29:13,600 --> 02:29:15,200
SPECIFIC TRAUMA-INFORMED 

3535
02:29:15,200 --> 02:29:16,880
INTERVENTIONS, WE ALSO NEED TO 

3536
02:29:16,880 --> 02:29:21,200
MAKE SURE THAT MENTAL HEALTH 

3537
02:29:21,200 --> 02:29:24,720
MEASURES ARE INCLUDED IN THE 

3538
02:29:24,720 --> 02:29:25,760
ADVOCACY MEASUREMENTS OF 

3539
02:29:25,760 --> 02:29:26,600
INTERVENTIONS WE'RE ALREADY 

3540
02:29:26,600 --> 02:29:29,360
DOING RESEARCH ON BECAUSE WE 

3541
02:29:29,360 --> 02:29:30,520
HAVE A LOT OF PEOPLE WHO SAY 

3542
02:29:30,520 --> 02:29:35,240
THAT THE TREATMENT ITSELF HAS 

3543
02:29:35,240 --> 02:29:39,240
CAUSED TRAUMA BUT WE DON'T HAVE 

3544
02:29:39,240 --> 02:29:46,040
ANY DATA ON THAT BECAUSE WHEN 

3545
02:29:46,040 --> 02:29:47,640
THE ADVOCACY MEASURES ARE 

3546
02:29:47,640 --> 02:29:51,400
DECIDED ON AND PEOPLE DECIDE 

3547
02:29:51,400 --> 02:29:53,200
WHAT TO MEASURE WHEN RESEARCHING

3548
02:29:53,200 --> 02:29:55,440
THE ADVOCACY OF AN INTERVENTION,

3549
02:29:55,440 --> 02:30:00,200
MENTAL HEALTH AND TRAUMA AREN'T 

3550
02:30:00,200 --> 02:30:02,440
INCLUDED IN THAT LIST SO WE NEED

3551
02:30:02,440 --> 02:30:04,960
TO MAKE SURE THAT IT'S 

3552
02:30:04,960 --> 02:30:07,200
INCORPORATED INTO A LOT OF 

3553
02:30:07,200 --> 02:30:07,800
RESEARCH THAT'S ALREADY BEING 

3554
02:30:07,800 --> 02:30:08,200
DONE.

3555
02:30:08,200 --> 02:30:10,560
>> I WONDER IF ANY OF THE 

3556
02:30:10,560 --> 02:30:11,760
SCIENTISTS ON THE COMMITTEE 

3557
02:30:11,760 --> 02:30:14,280
DOING THIS KIND OF RESEARCH MAY 

3558
02:30:14,280 --> 02:30:15,360
WANT TO COMMENT IN RESPONSE TO 

3559
02:30:15,360 --> 02:30:20,000
THAT QUERY.

3560
02:30:20,000 --> 02:30:21,600
I WANT TO INCLUDE THEM IN THE 

3561
02:30:21,600 --> 02:30:26,600
DISCUSSION.

3562
02:30:26,600 --> 02:30:27,320
I DON'T WANT TO PUT ANYONE ON 

3563
02:30:27,320 --> 02:30:38,720
THE SPOT.

3564
02:30:38,720 --> 02:30:39,480
>> JULIE.

3565
02:30:39,480 --> 02:30:41,720
>> THERE'S MOVEMENT AND 

3566
02:30:41,720 --> 02:30:46,800
PUBLICATIONS IN THE LAST YEAR OR

3567
02:30:46,800 --> 02:30:53,760
TWO AND THINKING THROUGH 

3568
02:30:53,760 --> 02:30:56,920
UNINTENDED CONSEQUENCES OF 

3569
02:30:56,920 --> 02:30:58,640
INTERVENTIONS AND SORT OF 

3570
02:30:58,640 --> 02:31:01,600
UNINTENTIONAL HARMS AND NOTING 

3571
02:31:01,600 --> 02:31:03,520
THAT'S REALLY MEASURED IN REALLY

3572
02:31:03,520 --> 02:31:04,920
CONSIDERED AND REALLY CALLING ON

3573
02:31:04,920 --> 02:31:06,920
THE FIELD TO THINK ABOUT THESE 

3574
02:31:06,920 --> 02:31:08,800
THINGS MORE CAREFULLY AS THEY'RE

3575
02:31:08,800 --> 02:31:09,400
DOING INTERVENTION WORK.

3576
02:31:09,400 --> 02:31:13,760
I'VE HEARD OVER THE LAST COUPLE 

3577
02:31:13,760 --> 02:31:15,400
YEARS A LOT MORE DISCUSSION THAN

3578
02:31:15,400 --> 02:31:17,400
I HAVE PREVIOUSLY AMONG THE 

3579
02:31:17,400 --> 02:31:18,200
SCIENTIFIC COMMUNITY ABOUT THE 

3580
02:31:18,200 --> 02:31:21,000
IMPORTANCE OF THINKING 

3581
02:31:21,000 --> 02:31:22,800
HOLISTICALLY ABOUT THE IMPACT 

3582
02:31:22,800 --> 02:31:24,480
THAT INTERVENTION IS HAVING NOT 

3583
02:31:24,480 --> 02:31:26,600
JUST IN TERMS OF YOUR PRIMARY 

3584
02:31:26,600 --> 02:31:27,840
OUTCOMES YOU HAVE TO SPECIFY AT 

3585
02:31:27,840 --> 02:31:29,640
THE START OF THE STUDY TO SAY IS

3586
02:31:29,640 --> 02:31:33,240
THE THING I WOULD BE IMPACTED BY

3587
02:31:33,240 --> 02:31:34,600
THIS INTERVENTION AND THINK 

3588
02:31:34,600 --> 02:31:35,920
WE'RE, PUSHED MORE IN THAT 

3589
02:31:35,920 --> 02:31:37,760
DIRECTION TO BE SPECIFIC AND 

3590
02:31:37,760 --> 02:31:39,240
CAREFUL ABOUT MEASURING THE 

3591
02:31:39,240 --> 02:31:41,880
OUTCOME INSTEAD OF MEASURING A 

3592
02:31:41,880 --> 02:31:44,600
MILLION THINGS AND SAYING IT'S 

3593
02:31:44,600 --> 02:31:46,200
RANDOM OUTCOME NUMBER 22 SEEMS 

3594
02:31:46,200 --> 02:31:49,600
TO HAVE AN AFFECT BUT TO BE 

3595
02:31:49,600 --> 02:31:52,200
THINKING CAREFULLY AND BROADLY 

3596
02:31:52,200 --> 02:31:53,760
ABOUT MEASURING HARMS IN 

3597
02:31:53,760 --> 02:31:55,200
ADDITION TO POTENTIAL BENEFITS 

3598
02:31:55,200 --> 02:31:56,240
OF INTERVENTIONS.

3599
02:31:56,240 --> 02:31:57,240
I'VE HEARD A NUMBER OF 

3600
02:31:57,240 --> 02:32:00,280
CONVERSATIONS OVER THE LAST YEAR

3601
02:32:00,280 --> 02:32:03,080
AND FEW TO NONE BEFORE THAT.

3602
02:32:03,080 --> 02:32:06,000
I THINK THINGS ARE MOVING IN 

3603
02:32:06,000 --> 02:32:06,400
THAT DIRECTION.

3604
02:32:06,400 --> 02:32:06,680
>> AWESOME.

3605
02:32:06,680 --> 02:32:09,800
>> JULIE, IS THERE A SPECIFIC 

3606
02:32:09,800 --> 02:32:12,000
INITIATIVE YOU ALL HAVE GOING ON

3607
02:32:12,000 --> 02:32:14,200
AT VANDERBILT YOU MAY WANT TO 

3608
02:32:14,200 --> 02:32:15,200
MENTION AROUND THIS?

3609
02:32:15,200 --> 02:32:17,000
>> SUSAN, I'LL TRACK DOWN THE 

3610
02:32:17,000 --> 02:32:19,400
ARTICLES I'M THINKING OF AND I 

3611
02:32:19,400 --> 02:32:23,200
WISH SOMEBODY COULD STEP IN.

3612
02:32:23,200 --> 02:32:26,600
I THINK ONE OF THE AUTHORS THAT 

3613
02:32:26,600 --> 02:32:29,600
WAS LEADING EIGHT OF THIS WORK 

3614
02:32:29,600 --> 02:32:31,600
AND EARLY CAREER WORK.

3615
02:32:31,600 --> 02:32:33,720
I CAN'T BELIEVE I'M BLANKING ON 

3616
02:32:33,720 --> 02:32:34,000
THIS.

3617
02:32:34,000 --> 02:32:38,760
I'LL BE EMBARRASSED IF THEY'RE 

3618
02:32:38,760 --> 02:32:39,280
LISTENING TO THIS DISCUSS.

3619
02:32:39,280 --> 02:32:41,760
>> I'M ACTUALLY NOT SURE WHO 

3620
02:32:41,760 --> 02:32:44,400
YOU'RE REFERRING TO BUT SOME OF 

3621
02:32:44,400 --> 02:32:48,000
MY COLLEAGUES WAS A LEAD AUTHOR.

3622
02:32:48,000 --> 02:32:49,760
THERE'S A DIFFERENT SET OF 

3623
02:32:49,760 --> 02:32:51,240
PAPERS BUT WE TRIED TO WRITE A 

3624
02:32:51,240 --> 02:32:54,000
PAPER LOOKING AT A FRAMEWORK FOR

3625
02:32:54,000 --> 02:32:57,240
LOOKING AT HARMS AN BENEFITS AND

3626
02:32:57,240 --> 02:32:57,560
SCREENINGS.

3627
02:32:57,560 --> 02:32:59,520
AND I THINK THESE POINTS ARE 

3628
02:32:59,520 --> 02:33:01,320
REALLY IMPORTANT BOTH HARMS AND 

3629
02:33:01,320 --> 02:33:02,640
BENEFITS AND ALSO ABOUT MENTAL 

3630
02:33:02,640 --> 02:33:04,160
HEALTH BECAUSE I THINK FOR THE 

3631
02:33:04,160 --> 02:33:06,560
FIRST ONE IN TERMS OF HARMS AND 

3632
02:33:06,560 --> 02:33:08,640
BENEFITS I THINK PEOPLE HAVE 

3633
02:33:08,640 --> 02:33:12,200
BEEN VERY BUSY PROMOTING 

3634
02:33:12,200 --> 02:33:13,200
SCREENING, PROMOTING CERTAIN 

3635
02:33:13,200 --> 02:33:14,400
INTERVENTIONS AND REALLY NOT 

3636
02:33:14,400 --> 02:33:16,400
WANTING TO MENTION THE 

3637
02:33:16,400 --> 02:33:18,200
POSSIBILITY THERE COULD BE HARMS

3638
02:33:18,200 --> 02:33:21,000
BECAUSE THEY STILL WANT TO GET 

3639
02:33:21,000 --> 02:33:25,320
THE INTERVENTIONS OUT IN THE 

3640
02:33:25,320 --> 02:33:25,600
COMMUNITY.

3641
02:33:25,600 --> 02:33:27,200
AND I THINK THAT'S PROBLEMATIC 

3642
02:33:27,200 --> 02:33:30,080
BECAUSE WE NEED TO LOOK AT 

3643
02:33:30,080 --> 02:33:31,200
UNINTENDED CONSEQUENCES AND 

3644
02:33:31,200 --> 02:33:32,640
UNINTENDED BENEFITS.

3645
02:33:32,640 --> 02:33:35,200
I THINK ALSO IN TERMS OF MENTAL 

3646
02:33:35,200 --> 02:33:38,360
HEALTH OUTCOMES GIVEN THE VERY 

3647
02:33:38,360 --> 02:33:40,960
HIGH PREVALENCE OF A WIDE RANGE 

3648
02:33:40,960 --> 02:33:42,800
OF CO-OCCURRING CHALLENGES, I 

3649
02:33:42,800 --> 02:33:46,880
THINK IT BEHOOVES US TO START 

3650
02:33:46,880 --> 02:33:49,960
INCLUDING EVEN IF WE CAN'T DO 

3651
02:33:49,960 --> 02:33:54,920
FULL ON STRUCTURED DIAGNOSTIC 

3652
02:33:54,920 --> 02:33:58,000
INTERVIEWS ON HEALTH CHANGES WE 

3653
02:33:58,000 --> 02:34:05,480
HAVE A LOT OF SYMPTOM CHECKLIST 

3654
02:34:05,480 --> 02:34:08,000
WOULD WELL AND WOULD NOT BE HARD

3655
02:34:08,000 --> 02:34:09,200
TO INCLUDE ALONG WITH OTHER 

3656
02:34:09,200 --> 02:34:13,360
OUTCOMES.

3657
02:34:13,360 --> 02:34:17,920
>> I THINK IN OUR SUICIDE 

3658
02:34:17,920 --> 02:34:18,680
PREVENTION, WE'RE GETTING GOOD 

3659
02:34:18,680 --> 02:34:19,400
INFORMATION BUT I DON'T THINK 

3660
02:34:19,400 --> 02:34:29,760
MUCH OF IT IS LOOKING AT THE 

3661
02:34:29,760 --> 02:34:31,160
CARNICITY PIECE AND THE QUALITY 

3662
02:34:31,160 --> 02:34:32,920
OF LIFE OVER AN EXTENDED PERIOD 

3663
02:34:32,920 --> 02:34:36,080
OF A PERSON'S LIFE TIME IS 

3664
02:34:36,080 --> 02:34:37,560
REALLY HAS NOT BEEN LOOKED AT, I

3665
02:34:37,560 --> 02:34:38,800
DON'T THINK.

3666
02:34:38,800 --> 02:34:40,400
THAT'S WHAT I'M CONCERNED WE'RE 

3667
02:34:40,400 --> 02:34:41,080
MISSING.

3668
02:34:41,080 --> 02:34:43,200
I THINK THE PREVENTIVE SUICIDE 

3669
02:34:43,200 --> 02:34:47,880
AND PREVENTIVE MENTAL HEALTH 

3670
02:34:47,880 --> 02:34:51,240
PIECE IS GOOD BUT DOESN'T GO FAR

3671
02:34:51,240 --> 02:34:55,880
ENOUGH FOR ME.

3672
02:34:55,880 --> 02:34:59,200
>> AND PEOPLE HAVE BECOME 

3673
02:34:59,200 --> 02:35:03,000
INTERESTED IN SEPARATE 

3674
02:35:03,000 --> 02:35:05,360
LITERATURE FROM THE TRAUMA 

3675
02:35:05,360 --> 02:35:08,400
LITERATURE AND THERE'S OLD 

3676
02:35:08,400 --> 02:35:09,600
LITERATURE IN AUTISM ON HOW KIDS

3677
02:35:09,600 --> 02:35:12,960
ARE AT HIGHER RISK FOR ABUSE AND

3678
02:35:12,960 --> 02:35:15,200
ALL KINDS OF OTHER VERY 

3679
02:35:15,200 --> 02:35:19,960
DIFFICULT SITUATIONS WITH PEERS 

3680
02:35:19,960 --> 02:35:21,520
AND THERE'S GOOD REASON AN OLD 

3681
02:35:21,520 --> 02:35:22,880
LITERATURE WOULD SUPPORT LOOKING

3682
02:35:22,880 --> 02:35:27,920
AT TRAUMA OR A POTENTIALLY 

3683
02:35:27,920 --> 02:35:29,240
TRAUMATIC EVENT IS IMPORTANT 

3684
02:35:29,240 --> 02:35:31,000
REALLY IMPORTANT AND WE ALSO 

3685
02:35:31,000 --> 02:35:33,600
KNOW JUST FROM THE GENERAL 

3686
02:35:33,600 --> 02:35:36,000
TRAUMA LITERATURE IT'S OFTEN THE

3687
02:35:36,000 --> 02:35:38,600
ACCUMULATION OF THE AEVENTS 

3688
02:35:38,600 --> 02:35:40,800
RATHER THAN THE ONE-OFF THAT HAD

3689
02:35:40,800 --> 02:35:45,200
SIGNIFICANT MENTAL HEALTH 

3690
02:35:45,200 --> 02:35:45,600
IMPACTS.

3691
02:35:45,600 --> 02:35:48,680
I THINK THREE DISPARATE BUT 

3692
02:35:48,680 --> 02:35:50,200
INTERSECTING POINTS YOU ALL HAVE

3693
02:35:50,200 --> 02:35:52,440
JUST RAISED ARE SUPER IMPORTANT 

3694
02:35:52,440 --> 02:35:56,840
LOOKING AT POTENTIALLY TRAUMATIC

3695
02:35:56,840 --> 02:35:58,920
EVENTS, ASSESSING MENTAL HEALTH 

3696
02:35:58,920 --> 02:36:00,240
WHEN LOOKING AT INTERVENTIONS 

3697
02:36:00,240 --> 02:36:02,400
THAT AREN'T SPECIFICALLY 

3698
02:36:02,400 --> 02:36:05,440
FOCUSSED ON MENTAL HEALTH AND 

3699
02:36:05,440 --> 02:36:09,200
THEN ALSO THINKING ABOUT HARMS 

3700
02:36:09,200 --> 02:36:11,080
AND BENEFITS.

3701
02:36:11,080 --> 02:36:15,200
>> THANK YOU SO MUCH.

3702
02:36:15,200 --> 02:36:26,480
LET'S GO TO SCOTT.

3703
02:36:26,480 --> 02:36:28,800
>> LOOKING AT TRAUMA AND 

3704
02:36:28,800 --> 02:36:32,920
ADVERSITY AND BURNOUT AND OTHER 

3705
02:36:32,920 --> 02:36:37,000
FACETS WE'VE DESCRIBED OVER THE 

3706
02:36:37,000 --> 02:36:38,640
YEARS IN TERMS OF THE SPOON 

3707
02:36:38,640 --> 02:36:40,640
THEORY THAT HAVE NOT MADE THEIR 

3708
02:36:40,640 --> 02:36:43,200
WAY TO RESEARCH LIKE WE NEED A 

3709
02:36:43,200 --> 02:36:47,560
LOT OF MORE OF THIS FOCUS ON 

3710
02:36:47,560 --> 02:36:48,440
TRAUMA AND SOLUTIONS AS WELL.

3711
02:36:48,440 --> 02:36:54,880
I THINK I MENTIONED AT PRIOR 

3712
02:36:54,880 --> 02:36:57,200
MEETINGS THAT THE UNDER FOCUS IN

3713
02:36:57,200 --> 02:37:00,400
TERMS OF POSITIVE PSYCHOLOGY 

3714
02:37:00,400 --> 02:37:05,040
TYPE ELEMENTS AS FAR AS THE 

3715
02:37:05,040 --> 02:37:14,040
RESILIENCE COURAGE, TEN ACITY 

3716
02:37:14,040 --> 02:37:17,040
GOES TO THE PSYCHOLOGICAL 

3717
02:37:17,040 --> 02:37:18,840
ELEMENTS BUT IT'S SOMETHING WE 

3718
02:37:18,840 --> 02:37:20,560
COULD HAVE A LOT OF OPPORTUNITY 

3719
02:37:20,560 --> 02:37:25,520
AND SOLUTIONS ON THAT AS FAR AS 

3720
02:37:25,520 --> 02:37:39,800
HOW TO AND BARRIERS AND THE 

3721
02:37:39,800 --> 02:37:43,200
LACKS OF SERVICES FOLKS NEED TO 

3722
02:37:43,200 --> 02:37:45,080
THRIVE AND HANDLE ADVERSITY AND 

3723
02:37:45,080 --> 02:37:47,200
CHALLENGES AND BARRIERS AND 

3724
02:37:47,200 --> 02:37:49,880
ESPECIALLY RIGHT NOW IN THE 

3725
02:37:49,880 --> 02:37:50,800
EXCEPTIONAL CIRCUMSTANCES WITH 

3726
02:37:50,800 --> 02:37:52,480
COVID-19 AND OTHER LIFE 

3727
02:37:52,480 --> 02:37:54,120
COMPLEXITIES AND HEALTH AND 

3728
02:37:54,120 --> 02:37:57,760
PHYSICAL AND MENTAL HEALTH 

3729
02:37:57,760 --> 02:37:58,360
COMPLEXITIES A LOT OF FOLKS 

3730
02:37:58,360 --> 02:38:00,800
EXPERIENCE ACROSS THE LIFE SPAN.

3731
02:38:00,800 --> 02:38:03,200
I WANT TO CONCUR WITH THE 

3732
02:38:03,200 --> 02:38:05,240
TRAUMA-INFORMED APPROACHES AND 

3733
02:38:05,240 --> 02:38:11,200
CARE AND ALSO RELATED TO GENDER,

3734
02:38:11,200 --> 02:38:16,680
I DON'T KNOW -- THERE WAS A 

3735
02:38:16,680 --> 02:38:18,320
FEDERAL COMMITTEE AND THE FOCUS 

3736
02:38:18,320 --> 02:38:22,200
AND I DON'T KNOW IF THAT'S 

3737
02:38:22,200 --> 02:38:23,200
SOMETHING TO LOOK INTO AS FAR AS

3738
02:38:23,200 --> 02:38:26,080
WHAT PURSUITS THAT COMMITTEE HAS

3739
02:38:26,080 --> 02:38:28,000
HAD AND HOW CROSS-CONNECTED IT 

3740
02:38:28,000 --> 02:38:28,800
IS TO DISABILITY.

3741
02:38:28,800 --> 02:38:31,240
>> THANK YOU.

3742
02:38:31,240 --> 02:38:35,200
I CAN LOOK INTO THAT.

3743
02:38:35,200 --> 02:38:38,840
>> I'M GOING TO GO TO JAYLIN 

3744
02:38:38,840 --> 02:38:39,040
NEXT.

3745
02:38:39,040 --> 02:38:42,280
>> THIS IS PART OF WHAT I WAS 

3746
02:38:42,280 --> 02:38:44,160
TRYING TO SEND IN AND I NOTICED 

3747
02:38:44,160 --> 02:38:45,840
SOME OF THE POINTS WERE NOT 

3748
02:38:45,840 --> 02:38:47,200
NECESSARILY ADDRESSED.

3749
02:38:47,200 --> 02:38:49,200
IN THE SUMMATION THERE'S SOME 

3750
02:38:49,200 --> 02:38:49,960
EXCELLENT THINGS AND THE 

3751
02:38:49,960 --> 02:38:51,640
COMMENTS MADE ARE WONDERFUL.

3752
02:38:51,640 --> 02:38:55,200
THERE'S THREE AREAS I WANT TO 

3753
02:38:55,200 --> 02:38:58,080
TOUCH ON QUICKLY ABOUT SUPPORTS.

3754
02:38:58,080 --> 02:39:03,840
THERE IS A HUGE NEED FOR 

3755
02:39:03,840 --> 02:39:06,960
SUPPORTS IN FAMILIES AND AND 

3756
02:39:06,960 --> 02:39:08,240
THEY NEED PLACE TO TURN TO 

3757
02:39:08,240 --> 02:39:10,920
NAVIGATE AND HELP WITH CHILDREN.

3758
02:39:10,920 --> 02:39:13,520
BY THE TIME THEY ARE CONTENDING 

3759
02:39:13,520 --> 02:39:16,080
WITH LACK OF SLEEP, AGGRESSIONS,

3760
02:39:16,080 --> 02:39:17,640
DIETARY REQUIREMENTS AND OTHER 

3761
02:39:17,640 --> 02:39:20,560
FAMILY MEMBERS, SOME OF WHICH 

3762
02:39:20,560 --> 02:39:22,400
MAY ALSO HAVE SPECIAL NEEDS OF 

3763
02:39:22,400 --> 02:39:23,800
THEIR OWN, IT'S VERY HARD FOR 

3764
02:39:23,800 --> 02:39:26,520
FAMILIES TO NAVIGATE AND THERE'S

3765
02:39:26,520 --> 02:39:28,120
VERY FEW THINGS IN COMMUNITIES 

3766
02:39:28,120 --> 02:39:29,840
WHERE SOMEONE CAN HAVE SOMEONE 

3767
02:39:29,840 --> 02:39:33,280
COME IN OR WORK WITH THEM.

3768
02:39:33,280 --> 02:39:35,680
THERE'S SPORADIC THINGS OR IF 

3769
02:39:35,680 --> 02:39:37,040
YOU'RE FORTUNATE ENOUGH TO GET 

3770
02:39:37,040 --> 02:39:38,880
ON THE PHONE AND FIND A PLACE 

3771
02:39:38,880 --> 02:39:43,200
YOU'RE A LUCKY PARENT.

3772
02:39:43,200 --> 02:39:47,480
THERE'S A LOT OF ANGST THERE.

3773
02:39:47,480 --> 02:39:52,440
WE ALSO NEED SUPPORTS FOR 

3774
02:39:52,440 --> 02:39:52,760
INDIVIDUALS.

3775
02:39:52,760 --> 02:39:53,800
THEY CAN COME FROM GREATER 

3776
02:39:53,800 --> 02:39:55,200
TRAINING FROM UNIVERSITIES AND 

3777
02:39:55,200 --> 02:39:55,480
COMMUNITY.

3778
02:39:55,480 --> 02:39:57,040
I'M VERY MUCH IN FAVOR OF THINGS

3779
02:39:57,040 --> 02:39:58,800
THAT CAN BE DONE IN COMMUNITY.

3780
02:39:58,800 --> 02:40:01,600
I THINK COMMUNITY COLLEGES, 

3781
02:40:01,600 --> 02:40:03,200
UNDERGRADUATE WORK AND 

3782
02:40:03,200 --> 02:40:04,600
UNIVERSALS AND TRAINING MORE 

3783
02:40:04,600 --> 02:40:07,120
PEOPLE NOT NECESSARILY MSWs AND 

3784
02:40:07,120 --> 02:40:11,200
GOING ON TO Ph.D.s WHICH ARE SO 

3785
02:40:11,200 --> 02:40:13,680
IMPORTANT, BUT PEOPLE THAT CAN 

3786
02:40:13,680 --> 02:40:15,200
ENCOUNTER PEOPLE EVERY DAY AND 

3787
02:40:15,200 --> 02:40:19,200
HELP INDIVIDUALS.

3788
02:40:19,200 --> 02:40:20,360
HELP THE INDIVIDUAL DEVELOP THE 

3789
02:40:20,360 --> 02:40:22,520
ABILITIES THEY NEED TO REACH 

3790
02:40:22,520 --> 02:40:24,720
GOALS THEY HAVE IN WORK OR 

3791
02:40:24,720 --> 02:40:25,520
COMMUNITY.

3792
02:40:25,520 --> 02:40:29,000
IT'S SO HARD TO FIND SOMEBODY 

3793
02:40:29,000 --> 02:40:30,800
THAT ISN'T JUST -- AND I DON'T 

3794
02:40:30,800 --> 02:40:32,840
WANT TO SAY JUST -- CAREGIVERS 

3795
02:40:32,840 --> 02:40:35,160
ARE SO IMPORTANT BUT GOING 

3796
02:40:35,160 --> 02:40:36,080
BEYOND AND TEACHING AND 

3797
02:40:36,080 --> 02:40:39,240
INSTRUCTING AND GUIDING PEOPLE 

3798
02:40:39,240 --> 02:40:49,000
TO OTHER PLATEAUS.

3799
02:40:49,000 --> 02:40:51,560
AND I HAVE SEEN ADDRESSED THE 

3800
02:40:51,560 --> 02:40:57,000
SAME TRACK MORE TRAINED PEOPLE 

3801
02:40:57,000 --> 02:41:02,440
IN MEDICINE.

3802
02:41:02,440 --> 02:41:07,560
AND PHYSICIANS DON'T KNOW HOW TO

3803
02:41:07,560 --> 02:41:15,200
DEAL WITH SENSORY ISSUES AND I 

3804
02:41:15,200 --> 02:41:18,480
HEAR FROM DOCTORS THAT DON'T 

3805
02:41:18,480 --> 02:41:20,120
HAVE THE EXPERTISE AND THEY'RE 

3806
02:41:20,120 --> 02:41:22,200
RELUCTANT TO GET THE EXPERTISE 

3807
02:41:22,200 --> 02:41:26,400
AND WE'VE HAD SOMEBODY GOOD 

3808
02:41:26,400 --> 02:41:29,800
WORKING WITH US DOING GRAND 

3809
02:41:29,800 --> 02:41:31,640
ROUNDS AT GEORGETOWN AND OTHER 

3810
02:41:31,640 --> 02:41:34,640
PLACES AND IT CAN BE DONE.

3811
02:41:34,640 --> 02:41:39,240
INFORMING GYNs HOW TO DEAL WITH 

3812
02:41:39,240 --> 02:41:41,600
SENSORY ISSUES ESPECIALLY FOR 

3813
02:41:41,600 --> 02:41:43,200
REGULAR VISITS AND ALSO IN CHILD

3814
02:41:43,200 --> 02:41:46,520
BIRTH FOR THOSE ON THE SPECTRUM 

3815
02:41:46,520 --> 02:41:48,320
THAT BECOME PARENTS.

3816
02:41:48,320 --> 02:41:49,560
ARE THERE CERTAIN THINGS THAT 

3817
02:41:49,560 --> 02:41:50,960
NEED TO BE TAKEN INTO 

3818
02:41:50,960 --> 02:41:51,960
CONSIDERATION AND SEEMS OFTEN 

3819
02:41:51,960 --> 02:41:57,000
THOSE THINGS ARE NOT.

3820
02:41:57,000 --> 02:42:00,200
IT GOES BACK TO THE COMMENTS 

3821
02:42:00,200 --> 02:42:01,600
JUST BEING MADE AND THESE 

3822
02:42:01,600 --> 02:42:03,200
INTERVENTIONS CAN HELP WITH THE 

3823
02:42:03,200 --> 02:42:07,200
MENTAL WELL BEING OF A FAMILY 

3824
02:42:07,200 --> 02:42:09,200
AND IF THE PARENTS AND FAMILY 

3825
02:42:09,200 --> 02:42:12,040
ARE DOING WELL THERE'S A 

3826
02:42:12,040 --> 02:42:13,720
LIKELIHOOD OF PUTTING THEM ON 

3827
02:42:13,720 --> 02:42:16,840
THE SPECTRUM AS HOUSEHOLD AND I 

3828
02:42:16,840 --> 02:42:19,200
PUT THESE DOWN AS SUPPORTS THAT 

3829
02:42:19,200 --> 02:42:20,760
AREN'T USUALLY LOOKED AT AND 

3830
02:42:20,760 --> 02:42:22,640
COULD BE FUNDED FEDERALLY BUT 

3831
02:42:22,640 --> 02:42:25,000
ALSO BE THINGS THAT COULD BE 

3832
02:42:25,000 --> 02:42:27,600
DEVELOPED WITHIN COMMUNITIES.

3833
02:42:27,600 --> 02:42:28,240
THANK YOU.

3834
02:42:28,240 --> 02:42:29,320
>> THANK YOU FOR SHARING THOSE 

3835
02:42:29,320 --> 02:42:30,360
IMPORTANT POINTS.

3836
02:42:30,360 --> 02:42:31,200
WE NOTED THEM.

3837
02:42:31,200 --> 02:42:32,960
I THINK THEY DO CONNECT TO SOME 

3838
02:42:32,960 --> 02:42:35,280
OF THE THINGS IN THERE NOW BUT 

3839
02:42:35,280 --> 02:42:39,240
WE CERTAINLY CAN TRY TO BEEF 

3840
02:42:39,240 --> 02:42:39,520
THOSE UP.

3841
02:42:39,520 --> 02:42:48,720
>> THANK YOU.

3842
02:42:48,720 --> 02:42:55,240
>> I'LL GO TO ALICE NEXT.

3843
02:42:55,240 --> 02:42:57,280
>> SORRY, I JUST DIDN'T TAKE MY 

3844
02:42:57,280 --> 02:43:00,160
HAND DOWN.

3845
02:43:00,160 --> 02:43:00,800
>> DENA.

3846
02:43:00,800 --> 02:43:04,360
>> IN TERMS OF THE GENDER ISSUE 

3847
02:43:04,360 --> 02:43:07,800
WE HAVE THIS 8 YEAR OLDS BEING 

3848
02:43:07,800 --> 02:43:09,800
MEASURED FOR INCIDENCE RATES.

3849
02:43:09,800 --> 02:43:11,600
WE TALKED ABOUT THAT BEFORE BUT 

3850
02:43:11,600 --> 02:43:13,680
WE NEED TO EVALUATE ADOLESCENT 

3851
02:43:13,680 --> 02:43:15,200
AND ADULT RATES OF AUTISM IN 

3852
02:43:15,200 --> 02:43:19,240
SOME OF OUR CENTERS SHOULD LOOK 

3853
02:43:19,240 --> 02:43:20,560
AT GENDER AS WELL.

3854
02:43:20,560 --> 02:43:22,600
>> QUESTION, I KNOW CDC IS 

3855
02:43:22,600 --> 02:43:24,400
WORKING ON SOME OF THOSE ISSUES 

3856
02:43:24,400 --> 02:43:27,200
BUT WE CAN MENTION THE 

3857
02:43:27,200 --> 02:43:27,800
IMPORTANCE OF THAT IN THE NEW 

3858
02:43:27,800 --> 02:43:31,040
PLAN.

3859
02:43:31,040 --> 02:43:34,000
ARE THERE OTHER COMMENTS FROM 

3860
02:43:34,000 --> 02:43:35,600
MEMBERS ON THE COMMITTEE OF 

3861
02:43:35,600 --> 02:43:37,200
WHAT'S HERE OR WHAT'S MISSING OR

3862
02:43:37,200 --> 02:43:39,600
NEW THINGS THAT HAVE COME TO 

3863
02:43:39,600 --> 02:43:43,200
MIND SINCE FILLING OUT THE 

3864
02:43:43,200 --> 02:43:52,000
SURVEYS EARLIER?

3865
02:43:52,000 --> 02:43:55,200
I KNOW IT MAY BE DIFFICULT TO 

3866
02:43:55,200 --> 02:43:56,760
THINK OF ON THE FLY.

3867
02:43:56,760 --> 02:43:58,960
WE HAVE YETTA.

3868
02:43:58,960 --> 02:44:01,960
>> THANK YOU FOR GIVING ME THE 

3869
02:44:01,960 --> 02:44:02,480
FLOOR AGAIN.

3870
02:44:02,480 --> 02:44:07,160
ONE THING TO THINK ABOUT AS WE 

3871
02:44:07,160 --> 02:44:12,440
DO THE STRATEGIC PLAN IS -- I 

3872
02:44:12,440 --> 02:44:26,280
KNOW THERE'S A GROUP BUT I WANT 

3873
02:44:26,280 --> 02:44:27,040
TO WORK TOWARDS INCLUDING 

3874
02:44:27,040 --> 02:44:32,240
DIFFERENT GROUPS I THINK THIS IS

3875
02:44:32,240 --> 02:44:41,280
GOING TO BE KEY BECAUSE WE DON'T

3876
02:44:41,280 --> 02:44:43,200
NECESSARILY KNOW HOW CERTAIN 

3877
02:44:43,200 --> 02:44:45,160
INTERVENTIONS CAN WORK OR WHAT 

3878
02:44:45,160 --> 02:44:48,040
THE AFFECTS OR IN VARIOUS 

3879
02:44:48,040 --> 02:44:49,520
COMMUNITIES IF 60% OF THE 

3880
02:44:49,520 --> 02:44:52,280
RESEARCH HAS BEEN DONE AND I'M 

3881
02:44:52,280 --> 02:44:53,960
LOOKING AT A SPECTRUM NEWS 

3882
02:44:53,960 --> 02:44:55,200
ARTICLE THAT WAS RECENTLY 

3883
02:44:55,200 --> 02:44:58,120
PUBLISHED WHERE THEY TALKED 

3884
02:44:58,120 --> 02:44:59,960
ABOUT THE INTERVENTION STUDIES 

3885
02:44:59,960 --> 02:45:02,360
AND AUTISM RESEARCH HOW 

3886
02:45:02,360 --> 02:45:05,040
BASICALLY 60% OF THE 

3887
02:45:05,040 --> 02:45:05,640
PARTICIPANTS IN THE AUTISM 

3888
02:45:05,640 --> 02:45:07,600
RESEARCH STUDIES ARE WHITE.

3889
02:45:07,600 --> 02:45:10,120
SO HOW DO WE REALLY KNOW IF AN 

3890
02:45:10,120 --> 02:45:11,120
INTERVENTION WORKS IN DIFFERENT 

3891
02:45:11,120 --> 02:45:16,800
GROUPS IF WE DO NOT STUDY 

3892
02:45:16,800 --> 02:45:17,440
DIFFERENT GROUPS?

3893
02:45:17,440 --> 02:45:21,520
I KNOW AS WE TALK ABOUT TRAUMA 

3894
02:45:21,520 --> 02:45:23,920
SPECIFICALLY FOR ME IT'S SOMEONE

3895
02:45:23,920 --> 02:45:27,200
WHO IDENTIFIES AS AFRICAN 

3896
02:45:27,200 --> 02:45:28,920
AMERICAN, YOU CAN'T NECESSARILY 

3897
02:45:28,920 --> 02:45:32,840
SEPARATE -- IF I WAS SOMEONE WHO

3898
02:45:32,840 --> 02:45:34,880
WAS AUTISTIC AND I'M ALSO 

3899
02:45:34,880 --> 02:45:36,200
AFRICAN AMERICAN THERE'S AN 

3900
02:45:36,200 --> 02:45:40,880
INTERSECTIONALITY I THINK ALSO 

3901
02:45:40,880 --> 02:45:41,800
NEEDS TO BE ADDRESSED SO AGAIN 

3902
02:45:41,800 --> 02:45:44,000
AS WE ARE LOOKING AT THE 

3903
02:45:44,000 --> 02:45:49,280
DIFFERENT TOPIC AREAS, I REALLY 

3904
02:45:49,280 --> 02:45:52,200
WANT TO ENSURE ALL THE DIFFERENT

3905
02:45:52,200 --> 02:45:54,240
INTERSECTIONS ARE BEING 

3906
02:45:54,240 --> 02:45:56,000
REFLECTIVE IN HOW RESEARCH IS 

3907
02:45:56,000 --> 02:45:57,240
BEING DONE.

3908
02:45:57,240 --> 02:46:00,400
AND I KNOW THAT THIS IS 

3909
02:46:00,400 --> 02:46:01,400
SOMETHING THAT'S LIKE THE HOT 

3910
02:46:01,400 --> 02:46:03,760
TOPIC RIGHT NOW BUT I HAVE TO 

3911
02:46:03,760 --> 02:46:08,400
HIT IT WHILE THE FIRE'S HOT AND 

3912
02:46:08,400 --> 02:46:10,280
PEOPLE ARE INTERESTED IN THIS.

3913
02:46:10,280 --> 02:46:11,200
NOW'S THE TIME.

3914
02:46:11,200 --> 02:46:19,160
BECAUSE WE DO HAVE THIS INTEREST

3915
02:46:19,160 --> 02:46:19,840
NATIONALLY, INTERNATIONALLY 

3916
02:46:19,840 --> 02:46:20,920
GOING ON IN THE WORLD THIS 

3917
02:46:20,920 --> 02:46:24,000
SOMETHING WE NEED TO BE FOCUSED 

3918
02:46:24,000 --> 02:46:25,640
ON AND FIGURE OUT HOW TO WEAVE 

3919
02:46:25,640 --> 02:46:28,240
INTO THE PLAN GOING FORWARD.

3920
02:46:28,240 --> 02:46:31,200
ANOTHER THOUGHT I HAD TOO AS YOU

3921
02:46:31,200 --> 02:46:34,240
WERE GOING THROUGH, SUSAN, AND I

3922
02:46:34,240 --> 02:46:35,680
DON'T NECESSARILY KNOW IF IT'S 

3923
02:46:35,680 --> 02:46:38,160
AUTISM RESEARCH OR MORE RESEARCH

3924
02:46:38,160 --> 02:46:39,240
IN GENERAL BUT IN SOME OF THE 

3925
02:46:39,240 --> 02:46:42,200
WORK I'VE DONE AND WORKING WITH 

3926
02:46:42,200 --> 02:46:43,200
RESEARCHERS ON DIFFERENT 

3927
02:46:43,200 --> 02:46:49,560
PROJECTS IS THIS IDEA OF 

3928
02:46:49,560 --> 02:46:51,200
PROVIDING STIPENDS OR PAYMENT TO

3929
02:46:51,200 --> 02:46:51,680
PARTICIPANTS.

3930
02:46:51,680 --> 02:46:53,840
IF YOU REALLY WANT TO DIVERSE IF

3931
02:46:53,840 --> 02:47:00,000
I WHO IS ABLE TO PARTICIPATE OR 

3932
02:47:00,000 --> 02:47:01,240
WANT FAMILIES TO SUPPORT THE 

3933
02:47:01,240 --> 02:47:02,720
WORK YOU'RE DOING, IT'S 

3934
02:47:02,720 --> 02:47:05,360
IMPORTANT TO ENSURE THERE'S SOME

3935
02:47:05,360 --> 02:47:08,720
TYPE OF STIPEND TO SUPPORT THEM 

3936
02:47:08,720 --> 02:47:10,840
BECAUSE THERE IS VALUE IN WHAT 

3937
02:47:10,840 --> 02:47:13,800
WE BRING TO THE TABLE AND I 

3938
02:47:13,800 --> 02:47:17,160
THINK THAT NEEDS TO BE 

3939
02:47:17,160 --> 02:47:19,000
RECOGNIZED AND I OFTEN HEAR FROM

3940
02:47:19,000 --> 02:47:23,200
PEOPLE IN THE COMMUNITY, OH, 

3941
02:47:23,200 --> 02:47:24,600
IT'S FEDERAL MONEY.

3942
02:47:24,600 --> 02:47:27,200
I CAN'T NECESSARILY DO THAT.

3943
02:47:27,200 --> 02:47:29,200
I DON'T KNOW HOW THAT GETS 

3944
02:47:29,200 --> 02:47:31,680
CHANGED OR WHAT THE PROCESS IS.

3945
02:47:31,680 --> 02:47:34,200
THESE ARE THINGS I'M HEARING BUT

3946
02:47:34,200 --> 02:47:36,920
I THINK IT'S ANOTHER PIECE ALSO 

3947
02:47:36,920 --> 02:47:38,600
IMPORTANT AS WE TALK ABOUT 

3948
02:47:38,600 --> 02:47:40,000
DIVERSITY IN THE WORK.

3949
02:47:40,000 --> 02:47:41,760
THANK YOU AGAIN FOR GIVING ME 

3950
02:47:41,760 --> 02:47:42,920
THE FLOOR.

3951
02:47:42,920 --> 02:47:45,000
>> THANK YOU FOR THOSE IMPORTANT

3952
02:47:45,000 --> 02:47:45,240
COMMENTS.

3953
02:47:45,240 --> 02:47:47,880
WE'LL NOTE THEM AS WE KNOW 

3954
02:47:47,880 --> 02:47:50,440
DIVERSITY IS AN IMPORTANT THING.

3955
02:47:50,440 --> 02:47:50,640
JOSH.

3956
02:47:50,640 --> 02:47:54,400
>> I'LL INTERJECT IN MANY 

3957
02:47:54,400 --> 02:47:57,240
STUDIES SUBJECTS ARE ACTUALLY 

3958
02:47:57,240 --> 02:47:59,160
RECOMPENSED FOR THE TIME IN THE 

3959
02:47:59,160 --> 02:48:00,960
STUDY BUT I'M SURE YOU MEAN MORE

3960
02:48:00,960 --> 02:48:02,160
SUBSTANTIALLY THAN THAT.

3961
02:48:02,160 --> 02:48:03,200
>> YES, I DO.

3962
02:48:03,200 --> 02:48:06,400
THANKS, JOSH.

3963
02:48:06,400 --> 02:48:08,520
>> THANK YOU.

3964
02:48:08,520 --> 02:48:14,920
SO LET'S GO TO CRAIG JOHNSON.

3965
02:48:14,920 --> 02:48:17,200
>> THANKS, SO MUCH, SUSAN.

3966
02:48:17,200 --> 02:48:19,200
AS I LOOKED OVER THE STRATEGIC 

3967
02:48:19,200 --> 02:48:20,840
PLAN IT'S VERY RESEARCH BASED 

3968
02:48:20,840 --> 02:48:23,120
AND I LOVE THE RESEARCH AND I 

3969
02:48:23,120 --> 02:48:24,600
THINK IT'S SO IMPORTANT.

3970
02:48:24,600 --> 02:48:26,400
I THINK ONE OF THE QUESTIONS I 

3971
02:48:26,400 --> 02:48:29,040
HAVE AND ESPECIALLY AS I'M 

3972
02:48:29,040 --> 02:48:29,680
UNDERSTANDING THE COMMITTEE, I'M

3973
02:48:29,680 --> 02:48:32,440
STILL IN THE PROCESS OF 

3974
02:48:32,440 --> 02:48:34,200
UNDERSTANDING ALL WE DO, HOW 

3975
02:48:34,200 --> 02:48:39,040
LONG'S IT TAKE FROM GOING FROM 

3976
02:48:39,040 --> 02:48:43,200
RESEARCH TO MEETING TANGIBLE 

3977
02:48:43,200 --> 02:48:44,560
NEEDS, PROVIDING SOLUTIONS?

3978
02:48:44,560 --> 02:48:45,240
THAT'S WHERE I'M AT.

3979
02:48:45,240 --> 02:48:48,120
I'M WITH THE FAMILIES WHO ARE 

3980
02:48:48,120 --> 02:48:49,960
WITH THE TANGIBLE NEEDS AND 

3981
02:48:49,960 --> 02:48:51,160
SOLUTIONS.

3982
02:48:51,160 --> 02:48:55,000
MANY PEOPLE GET ON THE PUBLIC 

3983
02:48:55,000 --> 02:48:57,680
FORUM THEY LOOK AT IT AND DON'T 

3984
02:48:57,680 --> 02:48:59,200
FULLY UNDERSTAND ALL THE 

3985
02:48:59,200 --> 02:48:59,480
RESEARCH.

3986
02:48:59,480 --> 02:49:01,200
IF YOU TALK TO ANYBODY I WOULD 

3987
02:49:01,200 --> 02:49:03,120
WORK WITH, THEY WOULDN'T KNOW 

3988
02:49:03,120 --> 02:49:06,000
THERE WAS RESEARCH GOING ON AND 

3989
02:49:06,000 --> 02:49:08,200
THEY JUST HAVE NEEDS.

3990
02:49:08,200 --> 02:49:10,280
THEY HAVE MULTIPLE TYPES OF 

3991
02:49:10,280 --> 02:49:10,800
NEEDS.

3992
02:49:10,800 --> 02:49:12,600
THE RESEARCH HELPS US OBVIOUSLY 

3993
02:49:12,600 --> 02:49:14,400
MEET THOSE NEEDS AND IDENTIFY 

3994
02:49:14,400 --> 02:49:17,320
THE AREAS THAT REALLY NEED TO BE

3995
02:49:17,320 --> 02:49:18,960
FOCUSSED ON BUT YOU KNOW, WHAT 

3996
02:49:18,960 --> 02:49:22,800
I'M TRYING TO FIGURE OUT IS ARE 

3997
02:49:22,800 --> 02:49:24,720
WE ALL RESEARCH BASED OR DOES 

3998
02:49:24,720 --> 02:49:27,280
THE RESEARCH ULTIMATELY GET TO 

3999
02:49:27,280 --> 02:49:29,760
TANGIBLE SOLUTIONS TO HELP 

4000
02:49:29,760 --> 02:49:32,520
FAMILIES WHO I'M WORKING WITH ON

4001
02:49:32,520 --> 02:49:36,280
AN ONGOING BASIS WHERE THEY'RE 

4002
02:49:36,280 --> 02:49:38,200
AT AND DEALING WITH THE ISSUES 

4003
02:49:38,200 --> 02:49:39,880
AND MANY PEOPLE THAT COME ON THE

4004
02:49:39,880 --> 02:49:40,880
PUBLIC FORUM.

4005
02:49:40,880 --> 02:49:43,200
>> THE STRATEGIC PLAN IS A BROAD

4006
02:49:43,200 --> 02:49:45,120
DOCUMENT AND IT COVERS ANY AND 

4007
02:49:45,120 --> 02:49:48,200
ALL AND WE'RE NOT WAITING FOR 

4008
02:49:48,200 --> 02:49:49,720
CERTAIN RESEARCH TO BE COMPLETED

4009
02:49:49,720 --> 02:49:51,720
BEFORE WE TAKE ACTION ON THINGS 

4010
02:49:51,720 --> 02:49:53,160
THAT CAN BE DONE IN THE HERE AND

4011
02:49:53,160 --> 02:49:55,200
NOW AND WE HAVE SERVICES 

4012
02:49:55,200 --> 02:49:57,200
AGENCIES ON OUR COMMITTEE TOO 

4013
02:49:57,200 --> 02:49:59,640
BUT JOSH DO YOU HAVE SOMETHING 

4014
02:49:59,640 --> 02:50:00,800
TO ADD?

4015
02:50:00,800 --> 02:50:02,600
>> CRAIG, I APPRECIATE THE 

4016
02:50:02,600 --> 02:50:04,360
OPPORTUNITY TO RESPOND DIRECTLY 

4017
02:50:04,360 --> 02:50:05,240
TO YOUR QUESTION TO HOW LONG 

4018
02:50:05,240 --> 02:50:08,400
DOES IT TAKE.

4019
02:50:08,400 --> 02:50:11,200
THE ANSWER IS IT DEPENDS ON THE 

4020
02:50:11,200 --> 02:50:11,720
RESEARCH.

4021
02:50:11,720 --> 02:50:13,000
PRETTY MUCH MOST THE THINGS WE 

4022
02:50:13,000 --> 02:50:14,360
DO RIGHT NOW FOR INDIVIDUALS 

4023
02:50:14,360 --> 02:50:17,120
WITH AUTISM WHETHER WE'RE 

4024
02:50:17,120 --> 02:50:20,880
TALKING ABOUT SCREENING IN 

4025
02:50:20,880 --> 02:50:21,960
PEDIATRIC PRACTICES OR SOME OF 

4026
02:50:21,960 --> 02:50:23,480
THE SUPPORTS WE DO HAVE 

4027
02:50:23,480 --> 02:50:27,240
AVAILABLE FOR HOUSING FOR JOBS 

4028
02:50:27,240 --> 02:50:29,400
AND THE LIKE HAVE ALL BEEN 

4029
02:50:29,400 --> 02:50:31,600
PIONEERED IN RESEARCH SETTINGS 

4030
02:50:31,600 --> 02:50:34,200
AND THEN APPLIED TO THE 

4031
02:50:34,200 --> 02:50:34,840
COMMUNITY.

4032
02:50:34,840 --> 02:50:36,000
IF WE'RE TALKING ABOUT SOME OF 

4033
02:50:36,000 --> 02:50:38,000
THE IMPORTANT GENETICS WORK 

4034
02:50:38,000 --> 02:50:39,120
BEING DONE YOU'LL READ ABOUT 

4035
02:50:39,120 --> 02:50:40,880
LATER IN THE SUMMARY OF 

4036
02:50:40,880 --> 02:50:43,000
NOMINATIONS THAT MAY BE DECADES 

4037
02:50:43,000 --> 02:50:45,960
AWAY FROM AFFECT BEING NEW 

4038
02:50:45,960 --> 02:50:49,600
INTERVENTIONS BUT ON THE OTHER 

4039
02:50:49,600 --> 02:50:51,200
HAND THE SCREENING PRACTICES AND

4040
02:50:51,200 --> 02:50:53,200
SERVICES STUFF AND TAKING INTO 

4041
02:50:53,200 --> 02:50:55,080
ACCOUNT GENDER DIFFERENCES, 

4042
02:50:55,080 --> 02:50:55,360
ETCETERA.

4043
02:50:55,360 --> 02:50:56,880
THEY ALL CAN HAVE IMPACT IN THE 

4044
02:50:56,880 --> 02:50:57,880
NEXT YEAR OR FIVE YEARS 

4045
02:50:57,880 --> 02:51:00,080
DEPENDING ON WHAT WE'RE TALKING 

4046
02:51:00,080 --> 02:51:00,920
ABOUT.

4047
02:51:00,920 --> 02:51:03,200
I THINK THERE'S DIFFERENT TIME 

4048
02:51:03,200 --> 02:51:09,440
FRAPZ -- FRAMES FOR TRANSLATION 

4049
02:51:09,440 --> 02:51:11,200
AND WHEN IS A RECOMMENDATION TO 

4050
02:51:11,200 --> 02:51:14,000
BE TAKEN UP AND YOU HEARD SOME 

4051
02:51:14,000 --> 02:51:15,120
OF THAT TODAY IN PAYING 

4052
02:51:15,120 --> 02:51:16,920
ATTENTION THAT INDIVIDUALS WITH 

4053
02:51:16,920 --> 02:51:19,200
AUTISM HAVE BEEN EXPOSED TO 

4054
02:51:19,200 --> 02:51:19,440
TRAUMAS.

4055
02:51:19,440 --> 02:51:23,000
WHILE WE NEED MORE RESEARCH AND 

4056
02:51:23,000 --> 02:51:27,240
THE RIGHT WAY TO MITIGATE IT AND

4057
02:51:27,240 --> 02:51:29,800
ENSURING PEOPLE ARE COGNITIVE OF

4058
02:51:29,800 --> 02:51:31,240
THAT AND CARE SAY RECOMMENDATION

4059
02:51:31,240 --> 02:51:33,320
WE CAN MAKE WHICH DOES NOT 

4060
02:51:33,320 --> 02:51:37,080
REQUIRE FURTHER RESEARCH, RIGHT?

4061
02:51:37,080 --> 02:51:38,440
THANK YOU.

4062
02:51:38,440 --> 02:51:39,640
>> WE ALSO HAVE MORE 

4063
02:51:39,640 --> 02:51:40,680
REPRESENTATION ON OUR COMMITTEE 

4064
02:51:40,680 --> 02:51:43,240
OF ADDITIONAL AGENCIES AND 

4065
02:51:43,240 --> 02:51:45,280
DEPARTMENTS THAT CAN HELP US ON 

4066
02:51:45,280 --> 02:51:52,000
SOME OF THE SERVICES AND SUPPORT

4067
02:51:52,000 --> 02:51:52,520
ISSUES IMMEDIATE TO THE 

4068
02:51:52,520 --> 02:51:57,280
COMMUNITY AND I'LL CALL ON 

4069
02:51:57,280 --> 02:52:01,280
AMANDA REICHERT.

4070
02:52:01,280 --> 02:52:06,160
>> I WANTED TO COMMENT ON YETTA 

4071
02:52:06,160 --> 02:52:07,200
AND CRAIG'S COMMENTS.

4072
02:52:07,200 --> 02:52:09,160
AT ACL IN THE PAST YEAR AND A 

4073
02:52:09,160 --> 02:52:15,200
HALF WE REALLY HAVE STEPPED UP 

4074
02:52:15,200 --> 02:52:18,400
THE EMPHASIS ON 

4075
02:52:18,400 --> 02:52:19,600
INTERSECTIONALITY AND TRYING TO 

4076
02:52:19,600 --> 02:52:21,600
DISCOVER WHAT AWAY CAN DO TO 

4077
02:52:21,600 --> 02:52:23,040
INCREASE THAT NOT ONLY THROUGH 

4078
02:52:23,040 --> 02:52:29,800
THE SERVICES BUT AT NIDLER THE 

4079
02:52:29,800 --> 02:52:32,960
RESEARCH WING OF ACL AND WE'RE 

4080
02:52:32,960 --> 02:52:36,400
IN CARP RATING THAT AND WE -- 

4081
02:52:36,400 --> 02:52:41,320
INCORPORATING THAT AND WE 

4082
02:52:41,320 --> 02:52:42,800
INCLUDED AN REQUIREMENT PEOPLE 

4083
02:52:42,800 --> 02:52:45,280
HAVE TO INCLUDE RACE AND 

4084
02:52:45,280 --> 02:52:46,440
ETHNICITY PROPORTIONAL TO THE 

4085
02:52:46,440 --> 02:52:48,840
POPULATION THEY SERVE AND TALK 

4086
02:52:48,840 --> 02:52:50,160
ABOUT WHY -- HOW THEY ARE GOING 

4087
02:52:50,160 --> 02:52:53,400
TO DO THAT AND NOT ONLY WITH 

4088
02:52:53,400 --> 02:52:55,240
THEIR RESEARCH PARTICIPANTS BUT 

4089
02:52:55,240 --> 02:53:00,200
ALSO WITH THEIR STAFF.

4090
02:53:00,200 --> 02:53:02,280
AND SO IT GOES ALL THE WAY FROM 

4091
02:53:02,280 --> 02:53:06,520
THE TOP OF ACL DOWN TO THE 

4092
02:53:06,520 --> 02:53:09,120
SERVICES TO THE RESEARCH TO THE 

4093
02:53:09,120 --> 02:53:09,400
GRANTEES.

4094
02:53:09,400 --> 02:53:12,040
WE'RE REALLY TRYING TO GET THAT 

4095
02:53:12,040 --> 02:53:12,800
PUSH THROUGH.

4096
02:53:12,800 --> 02:53:15,200
THE OTHER THING THAT'S EXCITING 

4097
02:53:15,200 --> 02:53:17,160
YOU MAY NOT KNOW ABOUT IS THAT A

4098
02:53:17,160 --> 02:53:19,800
YEAR AGO, MORE THAN A YEAR AGO 

4099
02:53:19,800 --> 02:53:23,200
NOW, THE PRESIDENT PUT OUT AN 

4100
02:53:23,200 --> 02:53:25,960
EXECUTIVE ORDER TO FOCUS ON DATA

4101
02:53:25,960 --> 02:53:28,760
RELATED TO UNDER SERVED 

4102
02:53:28,760 --> 02:53:29,040
POPULATIONS.

4103
02:53:29,040 --> 02:53:33,240
AND THERE'S A COMMITTEE, A BETA 

4104
02:53:33,240 --> 02:53:36,240
COMMITTEE FOR THAT AND I'M NOT A

4105
02:53:36,240 --> 02:53:39,200
PART OF THAT BUT FROM WHAT I 

4106
02:53:39,200 --> 02:53:41,960
UNDERSTAND IT'S GOING ACROSS A 

4107
02:53:41,960 --> 02:53:46,160
LOT OF DIFFERENT VULNERABLE 

4108
02:53:46,160 --> 02:53:48,200
POPULATIONS BUT RECOGNIZING THE 

4109
02:53:48,200 --> 02:53:51,200
PEOPLE WHO HAVE MULTIPLE 

4110
02:53:51,200 --> 02:53:54,360
VULNERABILITIES AND WHAT THAT 

4111
02:53:54,360 --> 02:53:56,640
CAN BE EXPONENTIAL RATHER THAN 

4112
02:53:56,640 --> 02:53:59,200
ADDITIVE THE EFFECTS OF THAT.

4113
02:53:59,200 --> 02:54:03,200
IT IS SOMETHING THAT PEOPLE ARE 

4114
02:54:03,200 --> 02:54:04,360
TALKING ABOUT NOW FINALLY.

4115
02:54:04,360 --> 02:54:08,480
SO I DIDN'T KNOW IF YOU WERE 

4116
02:54:08,480 --> 02:54:11,160
AWARE OF WHAT WAS GOING IN ACL 

4117
02:54:11,160 --> 02:54:15,160
AND NIDLER BUT IT'S THE MOST 

4118
02:54:15,160 --> 02:54:17,440
PROGRESS I'VE SEEN IN MY CAREER 

4119
02:54:17,440 --> 02:54:20,680
SO I'M PRETTY OPTIMISTIC ABOUT 

4120
02:54:20,680 --> 02:54:20,960
IT.

4121
02:54:20,960 --> 02:54:23,080
AND CRAIG, I JUST WANTED TO 

4122
02:54:23,080 --> 02:54:25,560
RESPOND I'M NOT SURE IF YOU'RE 

4123
02:54:25,560 --> 02:54:31,240
FAMILIAR WITH THE NIDLER 

4124
02:54:31,240 --> 02:54:39,200
RESEARCH PORTFOLIO AND OUR 

4125
02:54:39,200 --> 02:54:42,400
WEBSITE WHERE WE SHARE ALL THE 

4126
02:54:42,400 --> 02:54:43,920
RESEARCH FINDINGS AND REQUIRE 

4127
02:54:43,920 --> 02:54:45,680
ALL OUR GRANTEES TO NOT ONLY 

4128
02:54:45,680 --> 02:54:49,160
INCLUDE THE INPUT OF PEOPLE WITH

4129
02:54:49,160 --> 02:54:51,200
DISABILITIES IN DESIGNING THEIR 

4130
02:54:51,200 --> 02:54:55,400
RESEARCH AND THROUGHOUT THEIR 

4131
02:54:55,400 --> 02:54:58,400
RESEARCH BUT ALSO TO CREATE 

4132
02:54:58,400 --> 02:55:00,960
PRODUCTS THAT ARE USABLE FOR A 

4133
02:55:00,960 --> 02:55:02,200
WIDE RANGE OF STAKEHOLDERS 

4134
02:55:02,200 --> 02:55:03,000
INCLUDING PEOPLE WITH 

4135
02:55:03,000 --> 02:55:05,800
DISABILITIES AND THEIR FAMILIES 

4136
02:55:05,800 --> 02:55:07,000
SO THEY'RE NOT JUST WRITING 

4137
02:55:07,000 --> 02:55:09,200
RESEARCH PAPERS AND WRITING THEM

4138
02:55:09,200 --> 02:55:12,520
IN PEER-REVIEWED JOURNALS, 

4139
02:55:12,520 --> 02:55:15,080
THEY'RE EXPECTED TO WRITE FACT 

4140
02:55:15,080 --> 02:55:16,760
SHEET OR BLOGS OR WHATEVER 

4141
02:55:16,760 --> 02:55:20,240
PODCASTS THAT ARE GOING TO 

4142
02:55:20,240 --> 02:55:22,760
ATTRACT AND BE USEFUL FOR 

4143
02:55:22,760 --> 02:55:27,040
FAMILIES AND PEOPLE WITH 

4144
02:55:27,040 --> 02:55:27,520
DISABILITIES DIRECTLY.

4145
02:55:27,520 --> 02:55:28,280
INCLUDING INTERVENTIONS AND 

4146
02:55:28,280 --> 02:55:31,080
THAT'S THE OTHER THING I WAS 

4147
02:55:31,080 --> 02:55:33,600
GOING TO SAY IS NIDLER HAS A 

4148
02:55:33,600 --> 02:55:38,480
FOCUS ON STAGES OF RESEARCH AND 

4149
02:55:38,480 --> 02:55:42,200
SO WE PAY ATTENTION, TO, OKAY, 

4150
02:55:42,200 --> 02:55:44,640
THIS TOPIC HAS COME UP A LOT BUT

4151
02:55:44,640 --> 02:55:47,560
WE NEED TO FIGURE OUT WHAT FUND

4152
02:55:47,560 --> 02:55:50,240
FUNDING MECHANISM WE NEED TO 

4153
02:55:50,240 --> 02:55:52,400
OFFER SO IT'S GOING UP TO WAYS 

4154
02:55:52,400 --> 02:55:57,240
IT GETS OUT TO A LARGER 

4155
02:55:57,240 --> 02:55:59,760
POPULATION WHEN IT'S BEEN AN 

4156
02:55:59,760 --> 02:56:01,600
EVIDENCE-BASED PRODUCT AND WAYS 

4157
02:56:01,600 --> 02:56:02,760
TO MAKE IT MORE USEFUL DIRECTLY 

4158
02:56:02,760 --> 02:56:07,200
TO THE PEOPLE WHO NEED IT.

4159
02:56:07,200 --> 02:56:11,600
SO THANK YOU.

4160
02:56:11,600 --> 02:56:13,040
>> THANK YOU.

4161
02:56:13,040 --> 02:56:15,560
NEXT A QUESTION FROM STEVE 

4162
02:56:15,560 --> 02:56:16,080
WHITLO OR COMMENT.

4163
02:56:16,080 --> 02:56:17,600
>> THANK YOU.

4164
02:56:17,600 --> 02:56:19,440
I JUST WANTED TO COMMENT ON WHAT

4165
02:56:19,440 --> 02:56:22,800
CRAIG HAS SAID AND REINFORCE A 

4166
02:56:22,800 --> 02:56:23,160
LITTLE BIT.

4167
02:56:23,160 --> 02:56:27,600
IN OUR EXPERIENCE IN PROVIDING 

4168
02:56:27,600 --> 02:56:29,760
SERVICES, A LOT OF TIMES THE 

4169
02:56:29,760 --> 02:56:32,520
RESEARCH IS IMPORTANT BUT THE 

4170
02:56:32,520 --> 02:56:33,600
PRACTICAL APPLICATION OF THE 

4171
02:56:33,600 --> 02:56:36,000
PROGRAMS THAT EXIST BECOME 

4172
02:56:36,000 --> 02:56:37,520
HIGHER ON THE URGENCY SCALE THAN

4173
02:56:37,520 --> 02:56:39,080
SOME OF THESE THINGS.

4174
02:56:39,080 --> 02:56:42,200
I WOULD JUST LIKE TO ADDRESS THE

4175
02:56:42,200 --> 02:56:43,120
COORDINATION BETWEEN SERVICES 

4176
02:56:43,120 --> 02:56:45,840
AND IDENTIFYING A PLAN FOR THE 

4177
02:56:45,840 --> 02:56:47,080
FAMILY AND INDIVIDUAL EITHER 

4178
02:56:47,080 --> 02:56:48,720
DIAGNOSED OR YOUNG ADULT OR 

4179
02:56:48,720 --> 02:56:52,400
WHATEVER STAGE THEY ARE IN THEIR

4180
02:56:52,400 --> 02:56:54,800
LIFE, DEVELOP PLAN, IDENTIFY THE

4181
02:56:54,800 --> 02:56:57,240
RESOURCES OUT THERE AND FOLLOW 

4182
02:56:57,240 --> 02:57:02,720
THROUGH SO THE FAMILY IS NOT MET

4183
02:57:02,720 --> 02:57:06,480
HEAD ON BY ANOTHER UNANTICIPATED

4184
02:57:06,480 --> 02:57:08,280
HURDLE AND THIS WAS DISCUSSED IN

4185
02:57:08,280 --> 02:57:09,640
THE HOUSING ELEMENT EARLIER 

4186
02:57:09,640 --> 02:57:12,520
WHERE THE PRESIDENTS OF 

4187
02:57:12,520 --> 02:57:15,000
HOMELESSNESS ROSE WHEN THERE 

4188
02:57:15,000 --> 02:57:15,920
WASN'T PLANNING FOR WHAT HAPPENS

4189
02:57:15,920 --> 02:57:17,720
WHEN FOLKS GET OLDER.

4190
02:57:17,720 --> 02:57:19,200
THAT'S A COORDINATION OF 

4191
02:57:19,200 --> 02:57:20,640
SERVICES AND PLANNING ISSUE.

4192
02:57:20,640 --> 02:57:26,280
WHERE IT SAYS ADDRESS THE WHOLE 

4193
02:57:26,280 --> 02:57:36,080
SPECTRUM AND LIFE SPAN, I THINK 

4194
02:57:36,080 --> 02:57:37,360
THAT SHOULD BE AN IMPORTANT PART

4195
02:57:37,360 --> 02:57:44,800
OF WHAT WE SUGGEST  FOR A PLAN.

4196
02:57:44,800 --> 02:57:46,880
>> WE'LL LOOK TO YOU AND OTHERS 

4197
02:57:46,880 --> 02:57:48,800
WHO HAVE EXPERIENCE IN THOSE 

4198
02:57:48,800 --> 02:57:51,200
AREAS TO GIVE FEEDBACK.

4199
02:57:51,200 --> 02:57:55,000
THANK YOU FOR SHARING THAT.

4200
02:57:55,000 --> 02:57:56,280
SCOTT, DO YOU HAVE ANOTHER 

4201
02:57:56,280 --> 02:57:56,600
COMMENT?

4202
02:57:56,600 --> 02:57:59,200
>> SORRY, I WAS MORE FOCUSSED ON

4203
02:57:59,200 --> 02:58:05,520
THE TRAUMA PIECE BEFORE IN 

4204
02:58:05,520 --> 02:58:06,360
ADDITION SO THE 

4205
02:58:06,360 --> 02:58:07,840
INTERSECTIONALITY PIECE I WANT 

4206
02:58:07,840 --> 02:58:08,880
TO CONCUR AND INCLUDE THE 

4207
02:58:08,880 --> 02:58:11,200
STRATEGIC PLAN IN MATERIALS OF 

4208
02:58:11,200 --> 02:58:12,800
REFERRING BACK TO THE SPECIFIC 

4209
02:58:12,800 --> 02:58:16,000
FOR INSTANCE THE EXECUTIVE 

4210
02:58:16,000 --> 02:58:17,040
ORDERS.

4211
02:58:17,040 --> 02:58:19,000
THERE'S SIX EXECUTIVE ORDERS IN 

4212
02:58:19,000 --> 02:58:21,240
THAT SPACE ON DIVERSITY, EQUITY,

4213
02:58:21,240 --> 02:58:24,760
INCLUSION AND ACCESSIBILITY.

4214
02:58:24,760 --> 02:58:26,520
IT'S BEEN A HUGE PRIORITY FOR US

4215
02:58:26,520 --> 02:58:27,800
ACROSS THE FEDERAL GOVERNMENT 

4216
02:58:27,800 --> 02:58:29,760
AND HOPE IT INTERCONNECTS THERE 

4217
02:58:29,760 --> 02:58:32,560
TO THE FOCUS ON STRATEGIC PLAN 

4218
02:58:32,560 --> 02:58:35,440
AND MAKE SURE RACE, GENDER 

4219
02:58:35,440 --> 02:58:37,680
IDENTITY AND SOCIO ECONOMIC 

4220
02:58:37,680 --> 02:58:42,120
STATUS, ETCETERA IS WOVEN INTO 

4221
02:58:42,120 --> 02:58:43,400
THE TAPESTRY WITH THIS STRATEGY 

4222
02:58:43,400 --> 02:58:49,320
PLAN DEVELOPMENT.

4223
02:58:49,320 --> 02:58:51,080
AND THERE ARE SOME THINGS I LEFT

4224
02:58:51,080 --> 02:58:52,600
OUT ON THE COMMENTS ORIGINALLY 

4225
02:58:52,600 --> 02:58:57,280
ON THE SURVEY.

4226
02:58:57,280 --> 02:59:03,800
CAN WE SEND YOU ADDITIONAL AND 

4227
02:59:03,800 --> 02:59:06,920
THERE'S SPECIFIC STUDIES AND IS 

4228
02:59:06,920 --> 02:59:09,000
IT STILL POSSIBLE TO SEND YOU 

4229
02:59:09,000 --> 02:59:10,960
SOME ADDITIONAL INFO THAT COULD 

4230
02:59:10,960 --> 02:59:12,320
BE HELPFUL FOR THE DEVELOPMENT 

4231
02:59:12,320 --> 02:59:15,200
OF THE STRATEGIC PLAN ON SOME OF

4232
02:59:15,200 --> 02:59:17,400
THESE FOCUSES AND SPECIFIC 

4233
02:59:17,400 --> 02:59:18,240
ARTICLES?

4234
02:59:18,240 --> 02:59:19,800
>> ABSOLUTELY.

4235
02:59:19,800 --> 02:59:21,240
WE'D WELCOME FURTHER FEEDBACK 

4236
02:59:21,240 --> 02:59:24,040
AFTER THE SESSION AND I KNOW IT 

4237
02:59:24,040 --> 02:59:25,480
SOMETIMES IS CHALLENGING TO 

4238
02:59:25,480 --> 02:59:27,240
THINK ON YOUR FEET AS YOU LOOK 

4239
02:59:27,240 --> 02:59:28,520
AT ALL OF THIS AND THERE'S A LOT

4240
02:59:28,520 --> 02:59:30,520
OF INFORMATION TO TAKE IN.

4241
02:59:30,520 --> 02:59:31,280
IF YOU HAVE ADDITIONAL COMMENTS 

4242
02:59:31,280 --> 02:59:32,600
YOU CAN SEND THEM TO US.

4243
02:59:32,600 --> 02:59:36,720
I DON'T FLKNOW IF IT WOULD BE 

4244
02:59:36,720 --> 02:59:39,240
EASIER TO SEND E-MAILS OR IF 

4245
02:59:39,240 --> 02:59:41,800
YOU'D LIKE A SURVEY TYPE 

4246
02:59:41,800 --> 02:59:43,200
OPPORTUNITY OPENED TO PUT THINGS

4247
02:59:43,200 --> 02:59:44,240
INTO CATEGORIES.

4248
02:59:44,240 --> 02:59:49,280
DO YOU HAVE A THOUGHT ABOUT 

4249
02:59:49,280 --> 02:59:58,960
THAT?

4250
02:59:58,960 --> 03:00:04,760
>> I'D LIKE ARTICLES TO CITE AND

4251
03:00:04,760 --> 03:00:06,160
I THINK I LEFT OUT 

4252
03:00:06,160 --> 03:00:08,120
TRANSPORTATION STUFF AND WE 

4253
03:00:08,120 --> 03:00:09,240
DON'T YET HAVE REPRESENTATION ON

4254
03:00:09,240 --> 03:00:14,000
THE COMMITTEE FROM THE 

4255
03:00:14,000 --> 03:00:16,000
DEPARTMENT OF TRANSPORTATION AND

4256
03:00:16,000 --> 03:00:17,920
WE'VE COLLABORATED WITH DOT 

4257
03:00:17,920 --> 03:00:18,160
BEFORE.

4258
03:00:18,160 --> 03:00:20,560
I'M OKAY WITH SENDING STUFF IN A

4259
03:00:20,560 --> 03:00:22,200
WORD DOCUMENT YOU MAY WANT TO 

4260
03:00:22,200 --> 03:00:25,000
SEE WHAT THE OTHER COMMITTEE 

4261
03:00:25,000 --> 03:00:30,640
MEMBERS THINK AND IF FOLKS WERE 

4262
03:00:30,640 --> 03:00:34,840
INTERESTED IN RE-OPENING A 

4263
03:00:34,840 --> 03:00:35,440
STRUCTURED SURVEY AS LONG AS 

4264
03:00:35,440 --> 03:00:37,120
IT'S NOT TOO MUCH COMPLEXITY FOR

4265
03:00:37,120 --> 03:00:39,160
YOU AND YOUR STAFF TO DO.

4266
03:00:39,160 --> 03:00:40,920
>> I THINK WE COULD HANDLE THAT.

4267
03:00:40,920 --> 03:00:42,800
OUR GOAL IS TO GET ALL THE 

4268
03:00:42,800 --> 03:00:47,000
FEEDBACK IN TO GET THE DRAFTS AS

4269
03:00:47,000 --> 03:00:47,600
CLOSE TO WHAT THE COMMITTEE 

4270
03:00:47,600 --> 03:00:50,800
WANTS AS POSSIBLE.

4271
03:00:50,800 --> 03:00:51,760
WE'LL WANT TO DO EVERYTHING WE 

4272
03:00:51,760 --> 03:00:54,200
CAN TO BRING IN THE FEEDBACK AND

4273
03:00:54,200 --> 03:00:55,680
WOULD APPRECIATE ANY ARTICLES 

4274
03:00:55,680 --> 03:00:57,000
YOU WOULD SHARE OR WEBSITES OR 

4275
03:00:57,000 --> 03:01:00,120
OTHER SOURCES OF INFORMATION AND

4276
03:01:00,120 --> 03:01:02,600
DO PLAN TO MENTION THINGS ABOUT 

4277
03:01:02,600 --> 03:01:03,280
MAJOR FEDERAL INITIATIVES GOING 

4278
03:01:03,280 --> 03:01:05,760
ON SUCH AS WHAT YOU MENTIONED 

4279
03:01:05,760 --> 03:01:06,920
WITH THE EXECUTIVE ORDERS.

4280
03:01:06,920 --> 03:01:09,880
WE HAVE A LITTLE BIT MORE TIME.

4281
03:01:09,880 --> 03:01:10,760
ARE THERE MORE COMMENTS FROM 

4282
03:01:10,760 --> 03:01:12,680
ANYONE ELSE FROM THE COMMITTEE 

4283
03:01:12,680 --> 03:01:14,760
WHO MAY NOT HAVE SPOKEN OR JOSH 

4284
03:01:14,760 --> 03:01:16,560
WOULD YOU LIKE TO CHIME IN?

4285
03:01:16,560 --> 03:01:19,440
>> NO, JUST OPEN UP TO WRAP THIS

4286
03:01:19,440 --> 03:01:22,840
PART OF IT UP BUT PLEASE IF YOU 

4287
03:01:22,840 --> 03:01:33,320
HAVE MORE COMMENTS OR QUESTIONS.

4288
03:01:33,320 --> 03:01:36,200
AND THE SEND COMMENTS HERE CHAT.

4289
03:01:36,200 --> 03:01:37,800
STEVE IS STANDING BY IF YOU 

4290
03:01:37,800 --> 03:01:39,240
PREFER TO USE THAT FOR ANY 

4291
03:01:39,240 --> 03:01:47,000
REASON.

4292
03:01:47,000 --> 03:01:48,600
WELL, REMAIN RIGHT ON TIME AND 

4293
03:01:48,600 --> 03:01:52,320
SUGGEST WE TAKE A 7 MINUTE BREAK

4294
03:01:52,320 --> 03:01:56,640
AT 4:25 TO DISCUSS THE NEXT VIM 

4295
03:01:56,640 --> 03:01:58,960
 -- SUMMARY OF ADVANCES THE NEXT

4296
03:01:58,960 --> 03:01:59,480
TASK OF THE COMMITTEE.

4297
03:01:59,480 --> 03:02:00,680
>> THANK YOU EVERYBODY FOR THE 

4298
03:02:00,680 --> 03:02:01,200
FEEDBACK.

4299
03:02:01,200 --> 03:02:02,840
WE APPRECIATE IT.

4300
03:02:02,840 --> 03:02:05,800
I'M GOING GIVE A QUICK 

4301
03:02:05,800 --> 03:02:07,040
INTRODUCTION TO THE IACC SUMMARY

4302
03:02:07,040 --> 03:02:08,600
OF DISCUSSION BEFORE WE GET INTO

4303
03:02:08,600 --> 03:02:11,040
IT BUT AS A REMINDER THIS IS AN 

4304
03:02:11,040 --> 03:02:14,840
ANNUAL REPORT REQUIRED BY THE 

4305
03:02:14,840 --> 03:02:17,000
AUTISM CARES ACT OF 2019 AND THE

4306
03:02:17,000 --> 03:02:18,480
FINAL PRODUCT THE COMMITTEE 

4307
03:02:18,480 --> 03:02:21,800
WORKS ON IS A SUMMARY DOCUMENT 

4308
03:02:21,800 --> 03:02:23,600
WITH LAY FRIENDLY SUMMARIES OF 

4309
03:02:23,600 --> 03:02:25,760
THE 20 MOST SIGNIFICANT ADVANCES

4310
03:02:25,760 --> 03:02:30,880
IN ASD OR AUTISM BIOMEDICAL 

4311
03:02:30,880 --> 03:02:32,360
RESEARCH SELECTED BY THE 

4312
03:02:32,360 --> 03:02:33,000
COORDINATING COMMITTEE.

4313
03:02:33,000 --> 03:02:34,400
MEMBERS HAVE BEEN WORKING TO 

4314
03:02:34,400 --> 03:02:37,120
COMPLETE THE 2020 VERSION AND 

4315
03:02:37,120 --> 03:02:39,840
THE 2021 AND YOU ALL HAVE VOTED 

4316
03:02:39,840 --> 03:02:44,040
NOW ON THE CONTENT FOR THE 2020 

4317
03:02:44,040 --> 03:02:44,960
AND WE'RE IN THE PROCESS OF 

4318
03:02:44,960 --> 03:02:46,840
PUBLISHING THAT.

4319
03:02:46,840 --> 03:02:49,040
THAT WILL BE COMING OUT PROBABLY

4320
03:02:49,040 --> 03:02:52,240
SOME TIME IN MAY AND WE'LL 

4321
03:02:52,240 --> 03:02:53,720
HAPPILY INFORM YOU AND SEND THE 

4322
03:02:53,720 --> 03:02:56,240
MESSAGE ON OUR E-MAIL AND 

4323
03:02:56,240 --> 03:02:58,400
TWITTER WHEN THAT COMES OUT.

4324
03:02:58,400 --> 03:02:59,880
TODAY WE'LL BE TALKING ABOUT THE

4325
03:02:59,880 --> 03:03:01,280
2021 SUMMARY OF ADVANCES.

4326
03:03:01,280 --> 03:03:08,120
YOU ALL HAVE COMMITTED 

4327
03:03:08,120 --> 03:03:08,800
NOMINATIONS FOR THAT.

4328
03:03:08,800 --> 03:03:13,880
YOU THIS IS REHASHING THE 

4329
03:03:13,880 --> 03:03:16,920
PROCESS AND AT THE FINAL STAGE 

4330
03:03:16,920 --> 03:03:18,280
OF THE FINAL PUBLICATION.

4331
03:03:18,280 --> 03:03:20,520
THANK YOU FOR YOUR HARD WORK IN 

4332
03:03:20,520 --> 03:03:21,960
MAKING THE NOMINATIONS AND 

4333
03:03:21,960 --> 03:03:23,840
DISCUSSING THEM AND GETTING US 

4334
03:03:23,840 --> 03:03:27,040
TO THE POINT WHERE WE HAVE AN 

4335
03:03:27,040 --> 03:03:30,840
ALMOST FINAL PUBLICATION AND 

4336
03:03:30,840 --> 03:03:32,240
THANK YOU TO THE OARAC STAFF FOR

4337
03:03:32,240 --> 03:03:34,120
YOUR WORK ON THIS.

4338
03:03:34,120 --> 03:03:36,000
THE PUBLICATION DATE IS MAY 

4339
03:03:36,000 --> 03:03:37,680
WE'RE ANTICIPATING AND THE 

4340
03:03:37,680 --> 03:03:41,000
ARTICLES WILL COVER ALL SEVEN 

4341
03:03:41,000 --> 03:03:43,200
TOPIC AREAS OF THE IACC 

4342
03:03:43,200 --> 03:03:44,400
STRATEGIC PLAN AND SOMETHING NEW

4343
03:03:44,400 --> 03:03:46,880
WE WOULD LIKE TO SAY IS THIS 

4344
03:03:46,880 --> 03:03:50,080
YEAR WE'LL BE ISSUING AN EASY 

4345
03:03:50,080 --> 03:03:54,240
READ VERSION THAT CONTAINS ONE 

4346
03:03:54,240 --> 03:03:58,840
SENTENCE SUMMARIES OF IN EASY TO

4347
03:03:58,840 --> 03:04:00,760
READ LANGUAGE AND THAT WILL BE A

4348
03:04:00,760 --> 03:04:02,280
NEW ADDITION THIS YEAR.

4349
03:04:02,280 --> 03:04:08,240
ON THE 2021 SUMMARY OF ADVANCES 

4350
03:04:08,240 --> 03:04:14,440
OUR PROCESS IS TODAY WE'LL LOOK 

4351
03:04:14,440 --> 03:04:16,520
AT THE ARTICLES NOMINATE AND 

4352
03:04:16,520 --> 03:04:18,320
AFTER THE MEETING WE'LL SEND 

4353
03:04:18,320 --> 03:04:20,280
BALLOTS TO THE IACC MEMBERS TO 

4354
03:04:20,280 --> 03:04:22,200
VOTE ON YOUR TOP 20 AND AFTER 

4355
03:04:22,200 --> 03:04:24,160
THAT WE'LL FOLLOW THROUGH THE 

4356
03:04:24,160 --> 03:04:26,520
SAME PROCESS OF WORKING TOWARDS 

4357
03:04:26,520 --> 03:04:28,240
GETTING A PUBLICATION TOGETHER 

4358
03:04:28,240 --> 03:04:33,920
AND BEFORE HE  -- PREPARE 

4359
03:04:33,920 --> 03:04:35,160
SUMMARIES OF THE ARTICLES AND 

4360
03:04:35,160 --> 03:04:36,840
PROVIDE THE FINAL PUBLICATION WE

4361
03:04:36,840 --> 03:04:37,760
HOPE WILL COME OUT IN THE FALL 

4362
03:04:37,760 --> 03:04:42,000
OF 2022.

4363
03:04:42,000 --> 03:04:43,520
SO NOW WE'D LIKE TO HAVE SOME 

4364
03:04:43,520 --> 03:04:45,360
TIME TO TALK ABOUT THE 

4365
03:04:45,360 --> 03:04:46,840
NOMINATIONS AND SO JOSH, IF 

4366
03:04:46,840 --> 03:04:54,840
YOU'D LIKE TO TAKE IT FROM HERE.

4367
03:04:54,840 --> 03:05:01,040
>> THANK YOU, SUSAN, TO REMIND 

4368
03:05:01,040 --> 03:05:04,040
YOU OF THE PROCESS WE'LL FOLLOW 

4369
03:05:04,040 --> 03:05:04,880
TODAY.

4370
03:05:04,880 --> 03:05:07,560
YOU ALL RECEIVED A LENGTHY 

4371
03:05:07,560 --> 03:05:07,800
PACKET.

4372
03:05:07,800 --> 03:05:09,280
PLEASED AT THE NUMBER OF 

4373
03:05:09,280 --> 03:05:11,360
NOMINATIONS YOU ALL SUBMITTED 

4374
03:05:11,360 --> 03:05:14,880
OVER 18 PAGES WORTH OF 

4375
03:05:14,880 --> 03:05:15,240
NOMINATIONS.

4376
03:05:15,240 --> 03:05:18,760
EACH ONE IN THE PACKET IS 

4377
03:05:18,760 --> 03:05:22,840
DESCRIBED BY A SUMMARY BY THE 

4378
03:05:22,840 --> 03:05:23,840
NOMINATOR JUSTIFYING THEIR 

4379
03:05:23,840 --> 03:05:24,480
NOMINATION FOR INCLUSION IN THE 

4380
03:05:24,480 --> 03:05:35,600
DOCUMENT.

4381
03:05:35,600 --> 03:05:39,440
OUR GOAL IS TO GO THROUGH THE 

4382
03:05:39,440 --> 03:05:42,040
DISCUSSION AND FLAG WHAT IS 

4383
03:05:42,040 --> 03:05:46,440
PARTICULARLY NOTEWORTHY OR FLAG 

4384
03:05:46,440 --> 03:05:47,920
FOR ONE OR MORE REASONS MEMBERS 

4385
03:05:47,920 --> 03:05:50,840
WOULD LIKE TO FLAG FOR POTENTIAL

4386
03:05:50,840 --> 03:05:54,000
REMOVAL FROM THE LIST OR 

4387
03:05:54,000 --> 03:05:54,480
OTHERWISE COMMENT ABOUT.

4388
03:05:54,480 --> 03:05:55,160
SO WE'RE GOING GO THROUGH EACH 

4389
03:05:55,160 --> 03:05:58,440
OF THOSE QUESTIONS IN TURN.

4390
03:05:58,440 --> 03:05:59,440
SOME QUESTIONS HAVE QUITE A LOT 

4391
03:05:59,440 --> 03:06:01,640
OF NOMINATED ARTICLES SO WE'RE 

4392
03:06:01,640 --> 03:06:02,840
NOT GOING TO GO THROUGH EACH AND

4393
03:06:02,840 --> 03:06:05,640
EVERY NOMINATED ARTICLE BUT I 

4394
03:06:05,640 --> 03:06:07,600
WANT TO MAKE SURE TO GIVE 

4395
03:06:07,600 --> 03:06:09,080
EVERYONE AN OPPORTUNITY TO RAISE

4396
03:06:09,080 --> 03:06:10,800
FOR DISCUSSION ANY ARTICLES 

4397
03:06:10,800 --> 03:06:17,280
THEY'D LIKE TO RAISE.

4398
03:06:17,280 --> 03:06:22,800
THE FIRST GROUP OF ARTICLES, THE

4399
03:06:22,800 --> 03:06:26,320
FIRST FOUR ARE ON SCREENING AND 

4400
03:06:26,320 --> 03:06:26,600
DIAGNOSIS.

4401
03:06:26,600 --> 03:06:30,480
QUESTION 1 OF THE CURRENT 

4402
03:06:30,480 --> 03:06:31,600
STRATEGIC PLAN.

4403
03:06:31,600 --> 03:06:33,960
THERE WERE A NUMBER OF ARTICLES 

4404
03:06:33,960 --> 03:06:36,320
NOMINATED AND AS WE GO THROUGH 

4405
03:06:36,320 --> 03:06:37,800
THE LIST IF ANYONE HAS COMMENTS,

4406
03:06:37,800 --> 03:06:38,840
PLEASE DO SO.

4407
03:06:38,840 --> 03:06:44,040
WE HAVE FOUR ARTICLES ON THE 

4408
03:06:44,040 --> 03:06:49,520
FIRST PAGE RACE, ETHNICITIES AND

4409
03:06:49,520 --> 03:06:50,840
COMPUTATIONAL METHODS, EFFECTIVE

4410
03:06:50,840 --> 03:06:51,840
FAMILY NAVIGATION AND THIS IS 

4411
03:06:51,840 --> 03:06:56,480
THE KIND OF RESEARCH THOUGH FOR 

4412
03:06:56,480 --> 03:06:57,840
CHILDREN THAT WAS SUGGESTED 

4413
03:06:57,840 --> 03:07:00,520
WOULD BE HELPFUL FOR ADULTS WITH

4414
03:07:00,520 --> 03:07:01,000
AUTISM.

4415
03:07:01,000 --> 03:07:03,600
CERTAINLY MEETING A NEED AND 

4416
03:07:03,600 --> 03:07:05,600
NEXT SLIDE NOW THERE ARE THREE 

4417
03:07:05,600 --> 03:07:07,920
MORE IN THIS QUESTION 1.

4418
03:07:07,920 --> 03:07:09,360
SO WOULD ANYONE LIKE TO FLAG ANY

4419
03:07:09,360 --> 03:07:11,440
OF THESE, PROMOTE ONE YOU 

4420
03:07:11,440 --> 03:07:13,280
NOMINATED OR SOMEONE ELSE 

4421
03:07:13,280 --> 03:07:14,760
NOMINATED AS BEING PARTICULARLY 

4422
03:07:14,760 --> 03:07:15,320
IMPORTANT OR OTHERWISE MAKE 

4423
03:07:15,320 --> 03:07:26,720
COMMENTS?

4424
03:07:26,720 --> 03:07:29,800
>> THIS IS PAUL WONG FROM THE 

4425
03:07:29,800 --> 03:07:30,840
SIMONS FOUNDATION.

4426
03:07:30,840 --> 03:07:32,960
I AM NOT THE PERSON THAT 

4427
03:07:32,960 --> 03:07:37,880
NOMINATED THE ARTICLE YOU 

4428
03:07:37,880 --> 03:07:39,600
TOUCHED, THE FINEBERG ARTICLE ON

4429
03:07:39,600 --> 03:07:41,840
FAMILY NAVIGATION BUT I ALSO 

4430
03:07:41,840 --> 03:07:43,880
AGREE THIS IS IMPORTANT WORK 

4431
03:07:43,880 --> 03:07:48,440
THAT SHOWS VALUE OF A SPECIFIC 

4432
03:07:48,440 --> 03:07:51,480
KIND OF SUPPORT IN PROMOTING 

4433
03:07:51,480 --> 03:07:53,560
RECOGNITION AND DIAGNOSIS.

4434
03:07:53,560 --> 03:07:57,680
I HAVE NOT READ THE ARTICLE AND 

4435
03:07:57,680 --> 03:07:59,320
I'M LOOKING AT THE DESCRIPTION 

4436
03:07:59,320 --> 03:08:01,600
FROM THE HRSA AND MAYBE THE 

4437
03:08:01,600 --> 03:08:03,360
PROJECT WENT FURTHER AND COMING 

4438
03:08:03,360 --> 03:08:06,800
OUT IN ANOTHER PAPER THEY LOOKED

4439
03:08:06,800 --> 03:08:07,600
NOT ONLY AT RECOGNIZING, 

4440
03:08:07,600 --> 03:08:08,920
DIAGNOSIS AND WHETHER FAMILIES 

4441
03:08:08,920 --> 03:08:11,040
GOT CONNECTED WITH FURTHER 

4442
03:08:11,040 --> 03:08:16,760
SERVICES.

4443
03:08:16,760 --> 03:08:18,800
>> I THINK THE NOMINATOR WAS 

4444
03:08:18,800 --> 03:08:19,000
HRSA.

4445
03:08:19,000 --> 03:08:20,640
I DON'T KNOW IF THE NOMINATOR 

4446
03:08:20,640 --> 03:08:21,360
WOULD LIKE TO MAKE ADDITIONAL 

4447
03:08:21,360 --> 03:08:28,680
COMMENTS REGARDING THAT.

4448
03:08:28,680 --> 03:08:31,240
>> I WAS INVOLVED IN THAT AND I 

4449
03:08:31,240 --> 03:08:31,760
CANNOT COMMENT ON THAT 

4450
03:08:31,760 --> 03:08:33,000
PARTICULAR ITEM.

4451
03:08:33,000 --> 03:08:44,920
>> PONG  

4452
03:08:46,800 --> 03:08:48,680
>> OKAY.

4453
03:08:48,680 --> 03:08:50,840
>> SORRY, JOSH I WANT TO LOOK AT

4454
03:08:50,840 --> 03:08:57,440
THE SECOND SLIDE FOR A SECOND.

4455
03:08:57,440 --> 03:09:00,440
I WON'T TURN ON MY VIDEO BECAUSE

4456
03:09:00,440 --> 03:09:05,040
I'M IN AN AIRPORT BUT THE ONE 

4457
03:09:05,040 --> 03:09:06,480
THING THAT STRIKES ME BUT I 

4458
03:09:06,480 --> 03:09:08,000
DIDN'T NOMINATE AND WOULD NEED 

4459
03:09:08,000 --> 03:09:13,200
TO RELOOK AT THE LITERATURE FROM

4460
03:09:13,200 --> 03:09:18,800
2021 IS ONE OF THE TIMELY 

4461
03:09:18,800 --> 03:09:26,880
QUESTIONS HERE WAS DIAGNOSED 

4462
03:09:26,880 --> 03:09:29,160
FORMS OF DIAGNOSIS WHICH WAS A 

4463
03:09:29,160 --> 03:09:30,360
BURNING NEED DURING THE PANDEMIC

4464
03:09:30,360 --> 03:09:33,000
AND AN AREA OF CONTROVERSY BUT 

4465
03:09:33,000 --> 03:09:38,360
THE QUESTION IS HAS THERE BEEN 

4466
03:09:38,360 --> 03:09:46,960
GOOD WORK PUBLISHED.

4467
03:09:46,960 --> 03:09:50,800
>> I'M SURE NIMH FUNDED TO LOOK 

4468
03:09:50,800 --> 03:09:58,480
AT THAT AND PERHAPS REFLECTING 

4469
03:09:58,480 --> 03:10:03,640
HOW MUCH TIME IT TAKES AND 

4470
03:10:03,640 --> 03:10:11,440
THERE'S THE CHANG ET AL PAPER 

4471
03:10:11,440 --> 03:10:13,920
AND IS IT REALLY THAT RELEVANT 

4472
03:10:13,920 --> 03:10:20,600
BUT IT'S A GROUP FUNDED BY NIH 

4473
03:10:20,600 --> 03:10:22,800
GRANTS AND TRYING TO DEVELOP 

4474
03:10:22,800 --> 03:10:24,480
EASY AUTOMATED METHODS TO BE 

4475
03:10:24,480 --> 03:10:33,040
USED IN REMOTE SETTINGS TO 

4476
03:10:33,040 --> 03:10:34,800
DETERMINE A SCREENING APPROACH.

4477
03:10:34,800 --> 03:10:39,880
IN THIS PARTICULAR CASE THESE 

4478
03:10:39,880 --> 03:10:43,960
INVESTIGATORS WHO WERE AT DUKE 

4479
03:10:43,960 --> 03:10:49,880
DEVELOPED AN APP TO TRACK THE 

4480
03:10:49,880 --> 03:10:53,640
GAZE OF INDIVIDUAL TODDLERS WHO 

4481
03:10:53,640 --> 03:10:55,640
HAVE NOT YET BEEN DIAGNOSED AND 

4482
03:10:55,640 --> 03:10:58,840
ASK WHETHER TODDLERS WHO WILL BE

4483
03:10:58,840 --> 03:11:01,480
DIAGNOSED VERSUS TYPICALLY 

4484
03:11:01,480 --> 03:11:02,800
DIVERSE TODDLERS DIFFER IN THEIR

4485
03:11:02,800 --> 03:11:03,240
EYE TRACKING.

4486
03:11:03,240 --> 03:11:07,680
IT'S AN EARLY STAGE OF 

4487
03:11:07,680 --> 03:11:08,960
DEVELOPMENT BUT THEORETICALLY 

4488
03:11:08,960 --> 03:11:11,440
CAN BE USED IN REMOTE SETTING.

4489
03:11:11,440 --> 03:11:12,560
SPEAKS TO IT BUT NOT EXACTLY 

4490
03:11:12,560 --> 03:11:13,920
WHAT YOU ASKED FOR.

4491
03:11:13,920 --> 03:11:14,440
>> THANK YOU.

4492
03:11:14,440 --> 03:11:17,520
WE'LL LOOK TO 2022 FOR MORE.

4493
03:11:17,520 --> 03:11:18,080
ALICE.

4494
03:11:18,080 --> 03:11:20,600
>> THERE ARE SOME 2021 PAPERS 

4495
03:11:20,600 --> 03:11:23,040
THAT TALK ABOUT REMOTE 

4496
03:11:23,040 --> 03:11:24,160
DIAGNOSIS.

4497
03:11:24,160 --> 03:11:26,440
I COULD SEND SOME.

4498
03:11:26,440 --> 03:11:30,000
I JUST SENT ONE TO SUSAN BUT 

4499
03:11:30,000 --> 03:11:32,040
THERE ARE SEVERAL MORE.

4500
03:11:32,040 --> 03:11:33,000
WE WERE STRUGGLING WITH THIS AT 

4501
03:11:33,000 --> 03:11:33,960
THE BEGINNING OF THE PANDEMIC 

4502
03:11:33,960 --> 03:11:35,760
AND BY 2021 THEY WERE STARTING 

4503
03:11:35,760 --> 03:11:38,440
TO PUBLISH PAPERS ABOUT IT.

4504
03:11:38,440 --> 03:11:39,760
>> UNFORTUNATELY, IT DIDN'T MAKE

4505
03:11:39,760 --> 03:11:42,440
IT IN TIME FOR THIS ONE.

4506
03:11:42,440 --> 03:11:45,600
>> I'M ALSO NOT SURE THEY WOULD 

4507
03:11:45,600 --> 03:11:46,840
MEET THE REAL CRITERIA.

4508
03:11:46,840 --> 03:11:49,240
THERE'S REFLECTIONS BUT NOT SURE

4509
03:11:49,240 --> 03:11:50,840
THERE WASN'T SUFFICIENT NEW DATA

4510
03:11:50,840 --> 03:11:53,760
AND THE OTHER THING THAT'S 

4511
03:11:53,760 --> 03:11:54,720
COMPLICATED IS IN THE PANDEMIC 

4512
03:11:54,720 --> 03:12:01,480
IT WAS TRICKY TO DO ANY KIND OF 

4513
03:12:01,480 --> 03:12:07,240
COMPARISON BETWEEN IN PERSON AND

4514
03:12:07,240 --> 03:12:08,040
REMOTE.

4515
03:12:08,040 --> 03:12:11,960
>> AND THAT'S WHAT WE'D WANT TO 

4516
03:12:11,960 --> 03:12:14,880
SHOW IS REMOTE PROCEDURES TO 

4517
03:12:14,880 --> 03:12:15,080
WORK.

4518
03:12:15,080 --> 03:12:18,800
AILS.

4519
03:12:18,800 --> 03:12:20,960
-- ALICE.

4520
03:12:20,960 --> 03:12:30,480
>> THIS IS VERY EXCITING THE 

4521
03:12:30,480 --> 03:12:38,440
DATA SUPPORTS A MOBILE APP AND 

4522
03:12:38,440 --> 03:12:44,640
THEY FOCUSSED ON THE EYE 

4523
03:12:44,640 --> 03:12:44,920
MOVEMENT.

4524
03:12:44,920 --> 03:12:49,720
THERE'S FURTHER DEVELOPMENT TO 

4525
03:12:49,720 --> 03:12:53,480
BE ABLE TO BE USED I THINK I 

4526
03:12:53,480 --> 03:12:54,200
HEARD MORE DATA.

4527
03:12:54,200 --> 03:12:55,760
>> I THINK SO.

4528
03:12:55,760 --> 03:12:57,360
YOU'RE SPEAKING OF COURSE ABOUT 

4529
03:12:57,360 --> 03:12:58,240
THE CHINA PAPER.

4530
03:12:58,240 --> 03:13:02,320
I WOULD HIGHLIGHT THAT AS BEING 

4531
03:13:02,320 --> 03:13:07,680
ONE AT LEAST RELEVANT TO THE 

4532
03:13:07,680 --> 03:13:14,000
CURRENT QUESTION.

4533
03:13:14,000 --> 03:13:17,440
WOE HAD COMMENTS ABOUT CHANG AND

4534
03:13:17,440 --> 03:13:18,800
FINEBERG AND WE'LL MOVE ON TO 

4535
03:13:18,800 --> 03:13:24,080
QUESTION NUMBER TWO.

4536
03:13:24,080 --> 03:13:28,560
IT'S ON THE BIOLOGY OF AUTISM.

4537
03:13:28,560 --> 03:13:29,440
THERE'S A NUMBER OF DIFFERENT 

4538
03:13:29,440 --> 03:13:30,240
STUDIES HERE.

4539
03:13:30,240 --> 03:13:33,840
THE FIRST FIVE OR SO ARE ON THE 

4540
03:13:33,840 --> 03:13:36,640
FIRST SLIDE, EARLY SOCIAL 

4541
03:13:36,640 --> 03:13:38,040
COMMUNICATION, GROWTH 

4542
03:13:38,040 --> 03:13:39,040
DIFFERENCES IN THE BRAINS OF 

4543
03:13:39,040 --> 03:13:41,360
INDIVIDUALS OF INFANTS WHO WILL 

4544
03:13:41,360 --> 03:13:45,400
GO ON TO BE DIAGNOSED WITH 

4545
03:13:45,400 --> 03:13:47,680
AUTISM SPECTRUM DISORDER AND 

4546
03:13:47,680 --> 03:13:50,640
LONGITUDINAL STUDIES OF SOCIAL 

4547
03:13:50,640 --> 03:13:52,040
COMMUNICATION, LONG-TERM 

4548
03:13:52,040 --> 03:13:54,120
MATURATION OF ORGANOIDS AND I 

4549
03:13:54,120 --> 03:13:55,920
CAN DISCUSS THAT IF YOU'D LIKE 

4550
03:13:55,920 --> 03:14:00,040
AND WHY THAT'S RELEVANT TO THE 

4551
03:14:00,040 --> 03:14:03,080
BIOLOGY OF AUTISM AND SEX 

4552
03:14:03,080 --> 03:14:04,240
REGULATIONS.

4553
03:14:04,240 --> 03:14:07,080
ANY COMMENTS OR QUESTIONS.

4554
03:14:07,080 --> 03:14:08,560
DENA GO AHEAD.

4555
03:14:08,560 --> 03:14:10,800
>> PAGE 2 HAS THE FOUR ARTICLES 

4556
03:14:10,800 --> 03:14:12,480
THE HRSA ARTICLE BUT I DIDN'T 

4557
03:14:12,480 --> 03:14:14,840
SEE PAGE 3.

4558
03:14:14,840 --> 03:14:15,960
DID I MISS IT?

4559
03:14:15,960 --> 03:14:17,000
>> I HAVE IT IN MINE.

4560
03:14:17,000 --> 03:14:18,640
I DON'T HAVE IT PRINTED.

4561
03:14:18,640 --> 03:14:21,800
I HAVE THE PDF.

4562
03:14:21,800 --> 03:14:24,240
MAYBE THERE WAS A CHALLENGE IN 

4563
03:14:24,240 --> 03:14:31,520
PRINTING BUT ON PAGE 3rd HAVE 

4564
03:14:31,520 --> 03:14:32,640
CITRAMAN AND WEATHERBY.

4565
03:14:32,640 --> 03:14:37,360
LET'S GO BACK ONE SLIDES.

4566
03:14:37,360 --> 03:14:38,360
>> I'M SORRY.

4567
03:14:38,360 --> 03:14:40,080
>> GO AHEAD AND MAKE YOUR 

4568
03:14:40,080 --> 03:14:40,440
COMMENT.

4569
03:14:40,440 --> 03:14:41,640
>> I WANTED TO REPORT I HAVEN'T 

4570
03:14:41,640 --> 03:14:43,000
HAD TIME TO READ IT YET BUT 

4571
03:14:43,000 --> 03:14:50,000
THERE WAS A RECENT STUDY OUT OF 

4572
03:14:50,000 --> 03:14:52,040
GERMANY THAT SHOWS HIGHLY 

4573
03:14:52,040 --> 03:14:54,800
STRUCTURED, HIGHLY ACADEMIC 

4574
03:14:54,800 --> 03:14:56,320
PRESCHOOLS ARE GETTING BETTER 

4575
03:14:56,320 --> 03:14:58,160
SHORT-TERM OUTCOMES BUT LONGER 

4576
03:14:58,160 --> 03:15:00,040
OUTCOMES ARE WORSE FOR ALL 

4577
03:15:00,040 --> 03:15:02,800
CHILDREN NOT KIDS WITH 

4578
03:15:02,800 --> 03:15:13,000
DISABILITIES PER SE BUT I THINK 

4579
03:15:13,000 --> 03:15:14,920
THAT'S A SIGNIFICANT THING IN 

4580
03:15:14,920 --> 03:15:16,200
SCREENING TOOLS THAT COME AT AN 

4581
03:15:16,200 --> 03:15:16,960
EARLY AGE.

4582
03:15:16,960 --> 03:15:19,520
I KNOW WE'RE LOOKING TO MITIGATE

4583
03:15:19,520 --> 03:15:21,480
THE IMPAIRMENT-RELATED ISSUES OF

4584
03:15:21,480 --> 03:15:24,400
AUTISM BUT WORRIED ABOUT THE 

4585
03:15:24,400 --> 03:15:26,560
EARLY DIAGNOSIS STUDIES SUCH AS 

4586
03:15:26,560 --> 03:15:28,960
THIS ONE WILL RESULT IN KIDDOS 

4587
03:15:28,960 --> 03:15:31,280
THAT MIGHT NEED JUST MORE TIME 

4588
03:15:31,280 --> 03:15:34,000
FOR PLAY, MAY NEED MORE TIME FOR

4589
03:15:34,000 --> 03:15:36,120
SOCIALIZATION AND OUTDOORS 

4590
03:15:36,120 --> 03:15:38,840
INSTEAD OF SUCH INTENSIVE 

4591
03:15:38,840 --> 03:15:39,440
NORMALIZATION AND COMPLIANCE 

4592
03:15:39,440 --> 03:15:41,800
TRAINING.

4593
03:15:41,800 --> 03:15:42,440
I DON'T KNOW.

4594
03:15:42,440 --> 03:15:44,680
I JUST WANTED TO MENTION THAT 

4595
03:15:44,680 --> 03:15:46,600
BECAUSE IT SHINES A LIGHT ON 

4596
03:15:46,600 --> 03:15:48,440
THIS FROM A DIFFERENT 

4597
03:15:48,440 --> 03:15:48,920
TRAJECTORY.

4598
03:15:48,920 --> 03:15:53,520
>> I'M  NOT FAMILIAR WITH THE 

4599
03:15:53,520 --> 03:15:56,080
PAPER BUT A GOOD POINT AND 

4600
03:15:56,080 --> 03:16:00,440
ECHOED IN THE RECENT DECISION ON

4601
03:16:00,440 --> 03:16:00,720
SCREENING.

4602
03:16:00,720 --> 03:16:01,920
IT'S BEEN BACKED UP IN A NUMBER 

4603
03:16:01,920 --> 03:16:03,640
OF AREAS THAT WE NEED TO 

4604
03:16:03,640 --> 03:16:06,440
DEMONSTRATE NOT JUST THE ABILITY

4605
03:16:06,440 --> 03:16:08,960
TO IDENTIFY INDIVIDUALS EARLIER 

4606
03:16:08,960 --> 03:16:12,400
BUT ALSO TO DEMONSTRATE THAT 

4607
03:16:12,400 --> 03:16:14,640
IDENTIFICATION USING THESE KINDS

4608
03:16:14,640 --> 03:16:16,640
OF TOOLS WILL GET RESULT IN 

4609
03:16:16,640 --> 03:16:18,360
BETTER OUTCOMES.

4610
03:16:18,360 --> 03:16:19,880
I WILL POINT OUT THERE'S FAIRLY 

4611
03:16:19,880 --> 03:16:23,440
GOOD, NOT SUPER GOOD, BUT FAIRLY

4612
03:16:23,440 --> 03:16:26,840
GOOD DATA AS OTHERS HAVE 

4613
03:16:26,840 --> 03:16:28,480
PRESENTED HERE TO EARLIER 

4614
03:16:28,480 --> 03:16:30,640
ITERATIONS TO THIS GROUP THAT 

4615
03:16:30,640 --> 03:16:31,280
EARLIER INTERVENTION DOES RESULT

4616
03:16:31,280 --> 03:16:33,800
IN BETTER OUTCOMES BUT IT WOULD 

4617
03:16:33,800 --> 03:16:35,800
BE BETTER AND NEEDS TO BE 

4618
03:16:35,800 --> 03:16:37,240
DEMONSTRATED IN THE CONTEXT OF 

4619
03:16:37,240 --> 03:16:38,840
THE SCREENING PROCEDURES.

4620
03:16:38,840 --> 03:16:40,800
>> I WOULD REFER PEOPLE BACK TO 

4621
03:16:40,800 --> 03:16:42,080
SAM'S COMMENTS RELATED TO THIS 

4622
03:16:42,080 --> 03:16:42,360
AS WELL.

4623
03:16:42,360 --> 03:16:42,800
THANK YOU.

4624
03:16:42,800 --> 03:16:44,960
>> AND I THINK SAM WOULD LIKE TO

4625
03:16:44,960 --> 03:16:49,160
MAKE A COMMENT PERHAPS ABOUT THE

4626
03:16:49,160 --> 03:16:49,360
ISSUE.

4627
03:16:49,360 --> 03:16:50,800
THE HAND WENT UP AS SOON AS I 

4628
03:16:50,800 --> 03:16:51,560
SAID THAT.

4629
03:16:51,560 --> 03:16:53,560
GO AHEAD, SAM.

4630
03:16:53,560 --> 03:16:55,560
>> I JUST WANTED TO SAY THIS 

4631
03:16:55,560 --> 03:16:56,960
ALSO CONNECTS BACK TO COMMENTS I

4632
03:16:56,960 --> 03:16:59,880
HAD ON THE STRATEGIC PLAN IN 

4633
03:16:59,880 --> 03:17:03,920
WHICH THERE WAS A QUESTION ON 

4634
03:17:03,920 --> 03:17:04,640
EARLY IDENTIFICATION.

4635
03:17:04,640 --> 03:17:09,000
HAD LANGUAGE SAYING THE GOAL IS 

4636
03:17:09,000 --> 03:17:12,520
TO IDENTIFY KIDS AS SOON AS 

4637
03:17:12,520 --> 03:17:13,960
POSSIBLE.

4638
03:17:13,960 --> 03:17:14,800
THAT MIGHT HAVE BEEN REASONABLE 

4639
03:17:14,800 --> 03:17:18,160
BACK WHEN THE QUESTION WAS 

4640
03:17:18,160 --> 03:17:22,800
BETWEEN IDENTIFYING KIDS AGE 3 

4641
03:17:22,800 --> 03:17:24,480
VERSUS 8 OR LATER.

4642
03:17:24,480 --> 03:17:30,840
NOW WE'RE SEEING STUDIES THAT 

4643
03:17:30,840 --> 03:17:33,000
ARE IDENTIFYING KIDS AT AGE 12 

4644
03:17:33,000 --> 03:17:36,800
MONTHS AND WE DON'T HAVE THE 

4645
03:17:36,800 --> 03:17:39,840
EVIDENCE WHAT I CALL SUPER EARLY

4646
03:17:39,840 --> 03:17:41,920
IDENTIFICATION CONNECTED TO 

4647
03:17:41,920 --> 03:17:44,920
BETTER LONG-TERM OUTCOMES 

4648
03:17:44,920 --> 03:17:47,400
BECAUSE WE DON'T HAVE RESEARCH 

4649
03:17:47,400 --> 03:17:52,000
ON THE EARLY INTERVENTION.

4650
03:17:52,000 --> 03:17:54,400
>> I WILL REITERATE WE NEED THE 

4651
03:17:54,400 --> 03:17:54,800
EVIDENCE 

4652
03:17:54,800 --> 03:17:56,960
>> I THINK THAT'S WHY WE NEED TO

4653
03:17:56,960 --> 03:17:59,440
ALSO EDIT THE LANGUAGE IN THE 

4654
03:17:59,440 --> 03:18:02,920
STRATEGIC PLAN TO REFLECT THAT.

4655
03:18:02,920 --> 03:18:05,480
>> FAIR ENOUGH.

4656
03:18:05,480 --> 03:18:07,800
THAT'S AN EXCELLENT POINT AND 

4657
03:18:07,800 --> 03:18:09,440
JUST ADD OF COURSE WE CAN'T DO 

4658
03:18:09,440 --> 03:18:10,800
THE STUDIES TO DETERMINE WHETHER

4659
03:18:10,800 --> 03:18:12,520
WE CAN GET CLINICAL BENEFIT 

4660
03:18:12,520 --> 03:18:16,280
UNTIL WE DO IDENTIFY THEM 

4661
03:18:16,280 --> 03:18:16,520
EARLIER.

4662
03:18:16,520 --> 03:18:20,600
AND THERE'S A SECOND REASON WHY 

4663
03:18:20,600 --> 03:18:22,800
THE EARLY IDENTIFICATION STUDIES

4664
03:18:22,800 --> 03:18:25,800
ARE BEING DONE TO BE CLEAR.

4665
03:18:25,800 --> 03:18:26,840
WE KNOW THE BIOLOGY OF AUTISM 

4666
03:18:26,840 --> 03:18:28,920
STARTS EARLY IN LIFE BUT DON'T 

4667
03:18:28,920 --> 03:18:30,880
UNDERSTAND HOW THAT UNFOLDS AT 

4668
03:18:30,880 --> 03:18:33,000
EARLIER AGES BECAUSE WE HAVEN'T 

4669
03:18:33,000 --> 03:18:35,080
BEEN ABLE TO IDENTIFY 

4670
03:18:35,080 --> 03:18:35,640
INDIVIDUALS EARLIER.

4671
03:18:35,640 --> 03:18:37,800
SO IT'S NOT JUST ABOUT TREATMENT

4672
03:18:37,800 --> 03:18:41,920
BUT ALSO ABOUT UNDERSTANDING 

4673
03:18:41,920 --> 03:18:43,800
THAT WE NEED TO DEVELOP THAT 

4674
03:18:43,800 --> 03:18:45,840
THIGHS STUDIES AIMED AT 

4675
03:18:45,840 --> 03:18:46,840
IDENTIFYING CHILDREN EARLIER AT 

4676
03:18:46,840 --> 03:18:50,640
RISK FOR AUTISM WILL ALLOW US TO

4677
03:18:50,640 --> 03:18:52,440
UNDERSTAND THAT BIOLOGY.

4678
03:18:52,440 --> 03:18:53,480
BECAUSE EVEN THOUGH OF COURSE 

4679
03:18:53,480 --> 03:18:54,840
WHAT WE'RE TALKING ABOUT IS 

4680
03:18:54,840 --> 03:18:57,680
TRYING TO IMPROVE THE LIVES OF 

4681
03:18:57,680 --> 03:18:59,120
THESE CHILDREN, IMPROVING THE 

4682
03:18:59,120 --> 03:19:01,600
LIVES STILL RELIES ON 

4683
03:19:01,600 --> 03:19:02,360
UNDERSTANDING THE BIOLOGICAL 

4684
03:19:02,360 --> 03:19:06,160
UNFOLDING EARLIER ON.

4685
03:19:06,160 --> 03:19:06,360
OKAY.

4686
03:19:06,360 --> 03:19:07,440
I APPRECIATE THAT.

4687
03:19:07,440 --> 03:19:08,680
LET'S MOVE BACK TO QUESTION 

4688
03:19:08,680 --> 03:19:10,240
NUMBER 2 WHICH IS RELEVANT TO 

4689
03:19:10,240 --> 03:19:13,200
WHAT I JUST SAID WHICH IS ON THE

4690
03:19:13,200 --> 03:19:13,480
BIOLOGY.

4691
03:19:13,480 --> 03:19:14,640
HERE'S THE FIRST FIVE.

4692
03:19:14,640 --> 03:19:17,440
ANY COMMENTS OR QUESTIONS ON ANY

4693
03:19:17,440 --> 03:19:18,800
OF THESE FIRST FIVE.

4694
03:19:18,800 --> 03:19:20,160
DENA AND SAM I'D APPRECIATE IF 

4695
03:19:20,160 --> 03:19:21,680
YOU PUT YOUR HANDS DOWN UNLESS 

4696
03:19:21,680 --> 03:19:23,320
YOU WANT TO MAKE A COMMENT ON 

4697
03:19:23,320 --> 03:19:26,240
ANY OF THESE FIVE, THANKS.

4698
03:19:26,240 --> 03:19:27,920
ANYBODY WANT TO MAKE COMMENTS ON

4699
03:19:27,920 --> 03:19:28,840
OF THESE FIVE?

4700
03:19:28,840 --> 03:19:30,880
I'LL NOTE SOME ARE FROM 

4701
03:19:30,880 --> 03:19:42,040
COLLEAGUES AT NIDCB AND NICHD.

4702
03:19:42,040 --> 03:19:46,840
I WANTED TO MAKE A COMMENT ABOUT

4703
03:19:46,840 --> 03:19:52,200
THE GORDON A ET AL. PAPER TO 

4704
03:19:52,200 --> 03:19:54,840
UNDERSTAND WHY THIS IS IMPORTANT

4705
03:19:54,840 --> 03:19:55,440
THOUGH IT'S NOT SPECIFIC TO 

4706
03:19:55,440 --> 03:19:59,800
AUTISM.

4707
03:19:59,800 --> 03:20:02,440
AND I'LL SAY AT THE OUTSET, A. 

4708
03:20:02,440 --> 03:20:03,880
GORDON, NO RELATION.

4709
03:20:03,880 --> 03:20:05,480
THIS SEEKS TO UNDERSTAND BIOLOGY

4710
03:20:05,480 --> 03:20:08,040
AS IT UNFOLDS EARLY IN LIFE WHEN

4711
03:20:08,040 --> 03:20:09,680
WE KNOW A LOT OF THE RISK 

4712
03:20:09,680 --> 03:20:12,400
FACTORS FOR AUTISM BE GENETIC OR

4713
03:20:12,400 --> 03:20:13,520
ENVIRONMENTAL ARE ACTING ON THE 

4714
03:20:13,520 --> 03:20:13,720
BRAIN.

4715
03:20:13,720 --> 03:20:17,280
IT'S HARD TO STUDY THE BRAIN IN 

4716
03:20:17,280 --> 03:20:18,360
HUMAN BEINGS EARLY IN LIFE AND 

4717
03:20:18,360 --> 03:20:19,800
WHAT THIS PAPER SHOWS IS THAT 

4718
03:20:19,800 --> 03:20:22,080
YOU CAN ACTUALLY DO THAT USING 

4719
03:20:22,080 --> 03:20:26,880
CELLS IN A DISH WITHOUT HAVING 

4720
03:20:26,880 --> 03:20:30,240
TO RESORT TO STUDIES IN INFANTS 

4721
03:20:30,240 --> 03:20:31,880
OR PREGNANT WOMEN OR HAVING TO 

4722
03:20:31,880 --> 03:20:34,480
TRANSLATE FROM ANIMAL STUDIES.

4723
03:20:34,480 --> 03:20:36,800
THAT IS AN ADVANCE IN TERMS OF 

4724
03:20:36,800 --> 03:20:38,120
BEING ABLE TO MAKE FURTHER 

4725
03:20:38,120 --> 03:20:42,840
INFERENCES AS TO THE BIOLOGY OF 

4726
03:20:42,840 --> 03:20:43,440
EARLY EVENTS IN AUTISM.

4727
03:20:43,440 --> 03:20:46,840
I SEE HANDS UP FROM DENA AND 

4728
03:20:46,840 --> 03:20:47,640
ELAINE.

4729
03:20:47,640 --> 03:20:49,280
LET ME ASK IF EITHER OF YOU ARE 

4730
03:20:49,280 --> 03:20:50,440
RESPONDING TO THIS PARTICULAR 

4731
03:20:50,440 --> 03:20:51,000
ARTICLE FIRST?

4732
03:20:51,000 --> 03:20:54,320
>> NO, THE NEXT PAGE.

4733
03:20:54,320 --> 03:21:00,440
>> I DID WANT TO RESPOND TO THIS

4734
03:21:00,440 --> 03:21:03,600
BECAUSE IT COMES UP LATER WITH 

4735
03:21:03,600 --> 03:21:04,360
THE RISK FACTORS.

4736
03:21:04,360 --> 03:21:06,840
HAVING MODELS LIKE YOU'RE 

4737
03:21:06,840 --> 03:21:08,840
TALKING ABOUT TO STUDY BIOLOGY 

4738
03:21:08,840 --> 03:21:11,640
IS IN ADDITION TO HELPING IN 

4739
03:21:11,640 --> 03:21:12,920
TERMS OF WHATEVER INTERVENTIONS 

4740
03:21:12,920 --> 03:21:14,800
IS ACTUALLY REALLY IMPORTANT FOR

4741
03:21:14,800 --> 03:21:17,800
BEING ABLE TO STUDY THESE RISK 

4742
03:21:17,800 --> 03:21:20,120
FACTORS ESPECIALLY WHEN WE'RE 

4743
03:21:20,120 --> 03:21:20,960
TALKING ABOUT MODIFIABLE 

4744
03:21:20,960 --> 03:21:23,160
ENVIRONMENTAL FACTORS BECAUSE 

4745
03:21:23,160 --> 03:21:25,640
YOU CAN HAVE THESE EXPERIMENTAL 

4746
03:21:25,640 --> 03:21:29,200
SYSTEMS IS WHERE WE'LL GET THE 

4747
03:21:29,200 --> 03:21:30,880
EVIDENCE FOR WHETHER OR NOT SOME

4748
03:21:30,880 --> 03:21:33,480
OF THE CHEMICALS WE'RE ALL VERY 

4749
03:21:33,480 --> 03:21:34,880
CONCERNED ABOUT ARE THINGS WE 

4750
03:21:34,880 --> 03:21:41,920
SHOULD DO SOMETHING ABOUT.

4751
03:21:41,920 --> 03:21:43,240
I'M JUST RAISING THAT NOW 

4752
03:21:43,240 --> 03:21:45,040
BECAUSE THERE ARE SOME PAPERS 

4753
03:21:45,040 --> 03:21:57,000
LOOKING AT EPI CHEMICAL EVIDENCE

4754
03:21:57,000 --> 03:22:01,120
AND I'M NOT SURE IT'S WHERE IT 

4755
03:22:01,120 --> 03:22:02,040
NEEDS TO BE.

4756
03:22:02,040 --> 03:22:03,480
>> ALWAYS GLAD TO HAVE INPUT 

4757
03:22:03,480 --> 03:22:05,800
FROM THE EPA HERE.

4758
03:22:05,800 --> 03:22:08,240
NEXT UP, DENA, YOU WANT TO MAKE 

4759
03:22:08,240 --> 03:22:10,160
A COMMENT ABOUT NEXT SLIDE SO 

4760
03:22:10,160 --> 03:22:11,160
LET'S MOVE ALONG.

4761
03:22:11,160 --> 03:22:12,760
IT'S ONE MUCH THESE FOUR 

4762
03:22:12,760 --> 03:22:14,800
ARTICLES, IS THAT RIGHT?

4763
03:22:14,800 --> 03:22:16,520
>> YES.

4764
03:22:16,520 --> 03:22:18,800
THE ONE ALICIA PROVIDED ON THE 

4765
03:22:18,800 --> 03:22:23,440
AGE OF WALKING AND INTELLECTUAL 

4766
03:22:23,440 --> 03:22:23,840
DISABILITY.

4767
03:22:23,840 --> 03:22:25,880
AT FIRST I GOT EXCITED ABOUT 

4768
03:22:25,880 --> 03:22:28,600
THIS BECAUSE IT WOULD GIVE AN 

4769
03:22:28,600 --> 03:22:29,840
EXTERNALIZED EXPRESSION OF DELAY

4770
03:22:29,840 --> 03:22:34,600
AT LEAST TO MAYBE HELP PARENTS 

4771
03:22:34,600 --> 03:22:36,640
TO KNOW WHAT TO EXPECT TO MAKE 

4772
03:22:36,640 --> 03:22:38,880
THE EARLY REFERRAL BUT TO 

4773
03:22:38,880 --> 03:22:42,400
SUGGEST THIS IS LIMITED TO 

4774
03:22:42,400 --> 03:22:44,240
PEOPLE WITH INTELLECTUAL 

4775
03:22:44,240 --> 03:22:46,880
DISABILITIES SEEMS SHORT SIDED 

4776
03:22:46,880 --> 03:22:50,840
BECAUSE WE KNOW MOTOR DELAYS IN 

4777
03:22:50,840 --> 03:22:53,000
AUTISM ENCOMPASSES THE ENTIRETY 

4778
03:22:53,000 --> 03:22:53,800
OF THE SPECTRUM.

4779
03:22:53,800 --> 03:22:56,560
I WANTED TO SEE IF ALICIA MAY 

4780
03:22:56,560 --> 03:23:01,120
HAVE INSIGHT OR IDEAS.

4781
03:23:01,120 --> 03:23:04,920
>> ALICIA DO YOU WANT TO MAKE A 

4782
03:23:04,920 --> 03:23:05,160
COMMENT.

4783
03:23:05,160 --> 03:23:08,240
IN YOUR COMMENT YOU NOTED THE 

4784
03:23:08,240 --> 03:23:10,800
RELATIONSHIP BETWEEN WALKING WAS

4785
03:23:10,800 --> 03:23:13,200
NOT PRESENT IN ASD CHILDREN 

4786
03:23:13,200 --> 03:23:14,800
WITHOUT LOWER KWUCHLT.

4787
03:23:14,800 --> 03:23:14,960
-- 

4788
03:23:17,040 --> 03:23:17,200
I.Q.

4789
03:23:17,200 --> 03:23:18,840
>> I'M NOT SHOWING MY VIDEO 

4790
03:23:18,840 --> 03:23:20,640
BECAUSE I AM IN THE CAR BUT I AM

4791
03:23:20,640 --> 03:23:20,960
LISTENING.

4792
03:23:20,960 --> 03:23:26,640
I DID WANT TO PUT A PLUG IN FOR 

4793
03:23:26,640 --> 03:23:29,040
THIS PAPER THIS IS A PART OF A 

4794
03:23:29,040 --> 03:23:31,880
CONVERSION OF STUDIES LOOKING AT

4795
03:23:31,880 --> 03:23:34,280
DEVELOPMENT MILESTONES IN 

4796
03:23:34,280 --> 03:23:40,120
GENERAL IN ADDITION TO GENETIC 

4797
03:23:40,120 --> 03:23:40,880
FACTORS THAT HELP SUPPORT EARLY 

4798
03:23:40,880 --> 03:23:45,040
DIAGNOSIS WHICH WE KNOW IS 

4799
03:23:45,040 --> 03:23:51,040
IMPORTANT FOR EARLY 

4800
03:23:51,040 --> 03:24:05,640
INTERVENTIONS.

4801
03:24:05,640 --> 03:24:07,080
>> WE HAVE TO LOOK AT THE 

4802
03:24:07,080 --> 03:24:08,720
DETAILS OF THE PAPER AND MAKE 

4803
03:24:08,720 --> 03:24:11,400
SURE THE VIM DOES APPROPRIATELY 

4804
03:24:11,400 --> 03:24:14,840
REFLECT THE DATA.

4805
03:24:14,840 --> 03:24:18,840
IT IS POSSIBLE DESPITE OTHER 

4806
03:24:18,840 --> 03:24:24,360
DATA IT MAY LOOK AT MOTOR ISSUES

4807
03:24:24,360 --> 03:24:29,440
AND DOES NOT DETECT RELATIONSHIP

4808
03:24:29,440 --> 03:24:32,960
WITH ASD IN THOSE WITHOUT 

4809
03:24:32,960 --> 03:24:37,720
INTELLECTUAL IMPAIRMENTS BUT IF 

4810
03:24:37,720 --> 03:24:38,800
SELECTED WE'LL MAKE SURE THE 

4811
03:24:38,800 --> 03:24:41,200
DESCRIPTION ACCURATELY REFLECTS 

4812
03:24:41,200 --> 03:24:42,800
THE FINDINGS.

4813
03:24:42,800 --> 03:24:50,360
SCOTT, THIS PAPER OR ANOTHER?

4814
03:24:50,360 --> 03:24:53,040
>> ON PAPER MOTOR ISSUES IT 

4815
03:24:53,040 --> 03:24:56,800
REFLECTS BACK TO A CONCERN AMONG

4816
03:24:56,800 --> 03:24:58,440
MANY FOLKS THE DIAGNOSTIC 

4817
03:24:58,440 --> 03:25:00,760
CRITERIA DO A DISSERVICE BECAUSE

4818
03:25:00,760 --> 03:25:02,480
THE FACT IT'S MOSTLY SOCIAL 

4819
03:25:02,480 --> 03:25:04,200
COMMUNICATION IN THE DIAGNOSTIC 

4820
03:25:04,200 --> 03:25:12,800
AREA AND THE MOTOR EXECUTIVE 

4821
03:25:12,800 --> 03:25:14,240
FUNCTION HAS BEEN REFERENCED AND

4822
03:25:14,240 --> 03:25:15,320
WE KNOW THERE'S SOME IN THE 

4823
03:25:15,320 --> 03:25:17,240
LITERATURE THAT GO UP TO ADULTS 

4824
03:25:17,240 --> 03:25:18,800
LOOKING AT MOTOR ISSUES.

4825
03:25:18,800 --> 03:25:20,000
WE STILL SEE THE GAP.

4826
03:25:20,000 --> 03:25:21,520
I DON'T KNOW IF THAT COULD BE 

4827
03:25:21,520 --> 03:25:22,760
SOMETHING THAT COULD BE 

4828
03:25:22,760 --> 03:25:26,000
EMPHASIZED SEPARATELY FROM THE 

4829
03:25:26,000 --> 03:25:26,880
SUMMARY OF ADVANCEMENT OF 

4830
03:25:26,880 --> 03:25:28,040
STRATEGIC PLAN IN TERMS OF 

4831
03:25:28,040 --> 03:25:29,760
GETTING MORE RESEARCH ON THE 

4832
03:25:29,760 --> 03:25:32,960
OTHER ASPECTS OF AUTISM IN TERMS

4833
03:25:32,960 --> 03:25:38,320
OF OTHER THAN SOCIAL 

4834
03:25:38,320 --> 03:25:39,560
COMMUNICATION AS FAR AS MOTOR 

4835
03:25:39,560 --> 03:25:41,160
SENSORY EXECUTIVE FUNCTION.

4836
03:25:41,160 --> 03:25:42,600
>> WE'LL DATE THAT COMMENT TO 

4837
03:25:42,600 --> 03:25:43,240
THE PREVIOUS DISCUSSION ON THE 

4838
03:25:43,240 --> 03:25:48,240
STRATEGIC PLAN.

4839
03:25:48,240 --> 03:25:49,520
THANKS, SCOTT.

4840
03:25:49,520 --> 03:25:50,800
A COMMENT CAME INTO STEVE.

4841
03:25:50,800 --> 03:25:54,080
READ IT, PLEASE.

4842
03:25:54,080 --> 03:25:57,040
>> DR. RIVERA WILL GIVE THE 

4843
03:25:57,040 --> 03:26:04,640
COMMENT THEMSELVES.

4844
03:26:04,640 --> 03:26:07,920
>> IT'S A SIDE COMMENT BUT 

4845
03:26:07,920 --> 03:26:11,720
IMPORTANT TO BRING UP IN OUR 

4846
03:26:11,720 --> 03:26:12,600
DISCUSSIONS IN THE IACC THINK 

4847
03:26:12,600 --> 03:26:14,800
ABOUT OUR LANGUAGE CAREFULLY AND

4848
03:26:14,800 --> 03:26:19,440
USING THE TERM PREDICTIVE FACTOR

4849
03:26:19,440 --> 03:26:22,680
RATHER THAN RISK FACTOR TO AVOID

4850
03:26:22,680 --> 03:26:23,200
STIGMATIZING LANGUAGE.

4851
03:26:23,200 --> 03:26:24,840
I'VE HEARD THAT TERM COME UP A 

4852
03:26:24,840 --> 03:26:27,760
COUPLE TIMES AND WANTED TO PUT 

4853
03:26:27,760 --> 03:26:34,840
IN A GENTLE ACKNOWLEDGEMENT OF 

4854
03:26:34,840 --> 03:26:48,600
THAT .

4855
03:26:48,600 --> 03:26:53,240
>> I WANT TO REMIND US TO 

4856
03:26:53,240 --> 03:26:54,720
RESPECTFULLY CALL OUT LANGUAGE 

4857
03:26:54,720 --> 03:26:56,960
THAT MAY BE PERCEIVED AS 

4858
03:26:56,960 --> 03:26:57,320
DEMEANING.

4859
03:26:57,320 --> 03:27:00,320
I GET THE POINT IT'S ABOUT RISK 

4860
03:27:00,320 --> 03:27:02,640
IMPLIES A VALUE JUDGMENT ON THE 

4861
03:27:02,640 --> 03:27:07,280
OUTCOMES.

4862
03:27:07,280 --> 03:27:09,520
PREDICTIVE IS JUST AS GERMANE TO

4863
03:27:09,520 --> 03:27:10,240
THE ISSUE WE'RE TRYING TO 

4864
03:27:10,240 --> 03:27:10,840
UNDERSTAND WITHOUT THE VALUE 

4865
03:27:10,840 --> 03:27:11,120
JUDGMENT.

4866
03:27:11,120 --> 03:27:32,240
THANK YOU.

4867
03:27:32,240 --> 03:27:35,080
>> THANK YOU FOR LANGUAGE THAT 

4868
03:27:35,080 --> 03:27:35,720
MAY NOT BE HELPFUL.

4869
03:27:35,720 --> 03:27:41,640
TALK ABOUT PREDICTIONS OF 

4870
03:27:41,640 --> 03:27:42,560
OUTCOME.

4871
03:27:42,560 --> 03:27:49,840
THE NEXT SET.

4872
03:27:49,840 --> 03:27:51,720
THIS IS THE NEXT SET STILL ON 

4873
03:27:51,720 --> 03:27:52,680
QUESTIONS OF BIOLOGY.

4874
03:27:52,680 --> 03:28:02,400
ANY COMMENTS ON ANY OF THESE?

4875
03:28:02,400 --> 03:28:05,640
I WANT TO THANK ALICIA HALLADAY 

4876
03:28:05,640 --> 03:28:08,640
FOR NOMINATING THE ARTICLES AND 

4877
03:28:08,640 --> 03:28:12,040
WONDER WHICH SHE'D VOTE FOR.

4878
03:28:12,040 --> 03:28:13,640
SOME ARE THE TRAN FOCUSSED ON 

4879
03:28:13,640 --> 03:28:15,360
NEUROSCIENCE AND DEVELOPMENT OF 

4880
03:28:15,360 --> 03:28:18,800
BRAIN AND OTHERS LIKE ROSEN 

4881
03:28:18,800 --> 03:28:22,800
ABOUT EXPERIENCES IN EARLY LIFE 

4882
03:28:22,800 --> 03:28:25,840
AND SIBLINGS ON ADAPTIVE 

4883
03:28:25,840 --> 03:28:26,200
TRAJECTORIES.

4884
03:28:26,200 --> 03:28:33,880
QUITE A BREADTH HERE.

4885
03:28:33,880 --> 03:28:36,640
I CANNOT AVOID TALKING ABOUT THE

4886
03:28:36,640 --> 03:28:42,400
GENETICS BUT JOE IF YOU WANT TO 

4887
03:28:42,400 --> 03:28:51,920
HIGHLIGHT THE WILLS PAPER.

4888
03:28:51,920 --> 03:28:53,920
>> I'LL DEFER TO YOU.

4889
03:28:53,920 --> 03:28:57,000
>> IT GELS WELL WITH THE ONE ON 

4890
03:28:57,000 --> 03:28:59,240
ORGANOIDS IN TERMS OF 

4891
03:28:59,240 --> 03:29:00,640
IDENTIFYING -- THE QUESTION IS 

4892
03:29:00,640 --> 03:29:02,480
WHERE AND WHEN ARE GENES ACTING.

4893
03:29:02,480 --> 03:29:04,200
IN THIS PARTICULAR ONE IT'S NOT 

4894
03:29:04,200 --> 03:29:05,440
ONLY TALKING ABOUT GENETIC 

4895
03:29:05,440 --> 03:29:07,000
INFLUENCES BUT ALSO THE 

4896
03:29:07,000 --> 03:29:09,280
INFLUENCES OF SEX HORMONES AND 

4897
03:29:09,280 --> 03:29:12,160
IN PARTICULAR ESTROGEN AND THE 

4898
03:29:12,160 --> 03:29:15,000
SUGGESTION FROM THE DATA THOUGH 

4899
03:29:15,000 --> 03:29:17,440
IT COMES FROM MODEL ORGANISM 

4900
03:29:17,440 --> 03:29:19,800
DATA SO IT WOULD NEED TO BE 

4901
03:29:19,800 --> 03:29:22,280
VALIDATED THERE IS MANY OF THE 

4902
03:29:22,280 --> 03:29:26,840
AUTISM GENES WHICH CONFER 

4903
03:29:26,840 --> 03:29:29,720
SIGNIFICANT PREDICTIVE VALUE NOR

4904
03:29:29,720 --> 03:29:37,240
DIAGNOSIS ARE EXPRESSED EARLY IN

4905
03:29:37,240 --> 03:29:40,520
LIFE AND THE ALTERATIONS BY THE 

4906
03:29:40,520 --> 03:29:44,920
GENES CAN REVERSED BY ESTROGEN 

4907
03:29:44,920 --> 03:29:46,720
POTENTIALLY EXPLAINING THE 

4908
03:29:46,720 --> 03:29:48,240
DIFFERENCE OF RATES IN BOYS 

4909
03:29:48,240 --> 03:29:50,240
VERSUS GIRLS.

4910
03:29:50,240 --> 03:29:54,840
IT'S ALL VERY SUGGESTIVE AND 

4911
03:29:54,840 --> 03:29:58,600
VERY MUCH RAISING HYPOTHESIS 

4912
03:29:58,600 --> 03:29:59,280
RATHER THAN CONFIRMING BUT 

4913
03:29:59,280 --> 03:30:01,520
THAT'S THE WILLSEY PAPER.

4914
03:30:01,520 --> 03:30:03,440
I THINK WE HAVE A COMMENT.

4915
03:30:03,440 --> 03:30:06,160
NOT SURE THE PERSON BEHIND THAT.

4916
03:30:06,160 --> 03:30:10,800
>> IT'S ME ALICIA.

4917
03:30:10,800 --> 03:30:12,440
I'M PROBABLY THE ONE THAT 

4918
03:30:12,440 --> 03:30:14,800
NOMINATE THE ROSEN PAPER.

4919
03:30:14,800 --> 03:30:16,440
IT'S PROBABLY NOT BIOLOGY AND 

4920
03:30:16,440 --> 03:30:18,800
I'D PUT IT UNDER LIFE SPAN 

4921
03:30:18,800 --> 03:30:19,040
ISSUES.

4922
03:30:19,040 --> 03:30:21,640
IT DOESN'T DECREASE MY 

4923
03:30:21,640 --> 03:30:22,600
ENTHUSIASM FOR THE PAPER.

4924
03:30:22,600 --> 03:30:26,240
IT COMES FROM A STRENGTHS BASED 

4925
03:30:26,240 --> 03:30:27,960
MODEL AND LOOKS AT LONGITUDINAL 

4926
03:30:27,960 --> 03:30:30,920
DATA OVER DECADE AND FOCUSES ON 

4927
03:30:30,920 --> 03:30:34,640
THE PRESENCE OF A SIBLING.

4928
03:30:34,640 --> 03:30:37,960
THE STUDY NEEDS FURTHER 

4929
03:30:37,960 --> 03:30:38,240
REFINEMENT.

4930
03:30:38,240 --> 03:30:40,040
EVERY STUDY DOES BUT THIS IS 

4931
03:30:40,040 --> 03:30:40,920
IMPORTANT.

4932
03:30:40,920 --> 03:30:42,800
IT PROBABLY DOESN'T BELONG IN 

4933
03:30:42,800 --> 03:30:43,040
BIOLOGY.

4934
03:30:43,040 --> 03:30:45,000
IT PROBABLY BELONGS IN A 

4935
03:30:45,000 --> 03:30:47,600
DIFFERENT CATEGORY AND THAT'S MY

4936
03:30:47,600 --> 03:30:47,840
FAULT.

4937
03:30:47,840 --> 03:30:50,040
>> WE CAN MOVE THAT FOR THE 

4938
03:30:50,040 --> 03:30:50,240
VOTING.

4939
03:30:50,240 --> 03:30:51,240
IF THERE'S NO OTHER COMMENTS 

4940
03:30:51,240 --> 03:30:57,040
WE'LL MOVE ON TO THE NEXT 

4941
03:30:57,040 --> 03:31:01,560
QUESTION, THE NEXT SLIDE.

4942
03:31:01,560 --> 03:31:04,120
I APOLOGIZE FOR THE TITLE, RISK 

4943
03:31:04,120 --> 03:31:05,520
FACTORS.

4944
03:31:05,520 --> 03:31:07,400
LET'S SAY PREDICTIVE FACTORS 

4945
03:31:07,400 --> 03:31:12,640
INSTEAD OF RISK FACTORS AND 

4946
03:31:12,640 --> 03:31:24,840
WE'LL GET THAT INTO ISSUE IF 

4947
03:31:24,840 --> 03:31:26,880
THERE'S NO QUESTIONS ON THE 

4948
03:31:26,880 --> 03:31:36,440
FIRST GROUP?

4949
03:31:36,440 --> 03:31:37,920
>>  I WANT TO MENTION ON THE 

4950
03:31:37,920 --> 03:31:43,640
LAWRENCE ARTICLE THE FEMALE 

4951
03:31:43,640 --> 03:31:48,200
PROTECTIVE FACTOR -- WE'RE 

4952
03:31:48,200 --> 03:31:50,720
LOOKING AT YOUNG CHILDREN WHERE 

4953
03:31:50,720 --> 03:31:52,720
AUTISM MAY NOT YET BE 

4954
03:31:52,720 --> 03:31:53,040
PRESENTING.

4955
03:31:53,040 --> 03:31:57,560
WE'RE LOOKING AT YOUNG CHILDREN.

4956
03:31:57,560 --> 03:32:00,640
IT STARTS THERE'S A 4:1 

4957
03:32:00,640 --> 03:32:01,960
DISPARITY IN MALES VERSUS 

4958
03:32:01,960 --> 03:32:03,040
FEMALES BUT THE FIELD IS NOT 

4959
03:32:03,040 --> 03:32:04,160
FINDING THAT.

4960
03:32:04,160 --> 03:32:05,480
IN ADULTS WE'RE SEEING THAT IN 

4961
03:32:05,480 --> 03:32:06,880
RESEARCH FROM ALL OVER THE WORLD

4962
03:32:06,880 --> 03:32:09,000
THE NUMBERS AREN'T HOLDING UP IN

4963
03:32:09,000 --> 03:32:14,440
ADULTHOOD.

4964
03:32:14,440 --> 03:32:15,680
I HAVE CONCERNS ABOUT GENDER IN 

4965
03:32:15,680 --> 03:32:22,640
THESE KINDS OF STUDIES.

4966
03:32:22,640 --> 03:32:23,600
>> YOU'RE TALKING ABOUT THE 

4967
03:32:23,600 --> 03:32:25,600
LAWRENCE, CORRECT?

4968
03:32:25,600 --> 03:32:25,800
>> YES.

4969
03:32:25,800 --> 03:32:27,440
>> ONE THING TO BE AWARE OF IS 

4970
03:32:27,440 --> 03:32:28,360
THE QUESTION OF GENDER VERSUS 

4971
03:32:28,360 --> 03:32:35,480
SEX.

4972
03:32:35,480 --> 03:32:38,560
AND SEX IS NOT BINARY BUT I 

4973
03:32:38,560 --> 03:32:40,640
WONDER WHAT IS USED HERE AND 

4974
03:32:40,640 --> 03:32:42,320
WHETHER THEY'RE TRYING TO EFFECT

4975
03:32:42,320 --> 03:32:44,920
THE BIOLOGICAL EXPLANATION OR 

4976
03:32:44,920 --> 03:32:45,960
GENDER-BASED EXPLANATION.

4977
03:32:45,960 --> 03:32:48,560
THOSE ARE TWO KINDS OF 

4978
03:32:48,560 --> 03:32:49,320
QUESTIONS.

4979
03:32:49,320 --> 03:32:52,560
THEY FOUND GENETIC RISK BY 

4980
03:32:52,560 --> 03:32:54,240
CONNECTIVITY IN MALES BUT NOT 

4981
03:32:54,240 --> 03:32:54,440
FEMALES.

4982
03:32:54,440 --> 03:32:58,080
I THINK IT'S RELEVANT TO EITHER 

4983
03:32:58,080 --> 03:32:58,360
QUESTION.

4984
03:32:58,360 --> 03:33:03,480
YOU CAN IMAGINE IT CAN ARISE 

4985
03:33:03,480 --> 03:33:08,320
THROUGH BIOLOGICAL FACTORS EVEN 

4986
03:33:08,320 --> 03:33:14,840
PRENATALLY WITH SEX THAN GENDER 

4987
03:33:14,840 --> 03:33:19,200
OR COULD BE A GENDER AFFECT.

4988
03:33:19,200 --> 03:33:21,000
YOU'RE RIGHT IN POINTING THAT 

4989
03:33:21,000 --> 03:33:22,800
OUT.

4990
03:33:22,800 --> 03:33:24,800
SOME OF THE NOMINATIONS 

4991
03:33:24,800 --> 03:33:28,640
PARTICULARLY THE CLAY AND MAYBE 

4992
03:33:28,640 --> 03:33:30,800
ANOTHER ONE ARE COMMENTARIES 

4993
03:33:30,800 --> 03:33:32,320
OPPOSED TO SCIENTIFIC ADVANCES.

4994
03:33:32,320 --> 03:33:34,880
WE HAD THE DISCUSSION BACK IN 

4995
03:33:34,880 --> 03:33:36,640
SEPTEMBER WHETHER WE WANTED TO 

4996
03:33:36,640 --> 03:33:37,880
CONTINUE WITH THE PREVIOUS 

4997
03:33:37,880 --> 03:33:39,960
POLICY OF NOT INCLUDING 

4998
03:33:39,960 --> 03:33:42,880
COMMENTARIES UNLESS THEY BREAK 

4999
03:33:42,880 --> 03:33:57,000
NEW GROUNDS.

5000
03:33:57,000 --> 03:34:00,640
JOE YOU'RE MUTED.

5001
03:34:00,640 --> 03:34:02,680
>> I'M NOT FAMILIAR WITH THE 

5002
03:34:02,680 --> 03:34:04,240
ONES YOU'RE REFERRING TO BUT I 

5003
03:34:04,240 --> 03:34:08,880
THINK IT'S ACCEPTABLE TO HAVE A 

5004
03:34:08,880 --> 03:34:10,600
COMMENTARY IF IT'S 

5005
03:34:10,600 --> 03:34:11,400
TRANSFORMATIVE OR BREAKS NEW 

5006
03:34:11,400 --> 03:34:17,640
GROUND OR GIVES A NEW 

5007
03:34:17,640 --> 03:34:22,640
PERSPECTIVE ON SOMETHING.

5008
03:34:22,640 --> 03:34:26,800
>> I'M THINKING OF THE CLAY, THE

5009
03:34:26,800 --> 03:34:32,240
FIRST ONE ON THE LIST.

5010
03:34:32,240 --> 03:34:33,200
>> OKAY.

5011
03:34:33,200 --> 03:34:38,480
I THINK THAT'S MORE THAN 

5012
03:34:38,480 --> 03:34:38,800
COMMENTARY.

5013
03:34:38,800 --> 03:34:42,280
I THINK IT'S, WE'VE HAD BIG 

5014
03:34:42,280 --> 03:34:44,960
ADVANCE IN THE FIELD OVER THE 

5015
03:34:44,960 --> 03:34:46,800
LAST 15 YEARS OF THE RECOGNITION

5016
03:34:46,800 --> 03:34:50,800
OF THE SINGLE-GENE DISORDERS AS 

5017
03:34:50,800 --> 03:34:52,040
IF THAT'S ALL THAT'S HAPPENING 

5018
03:34:52,040 --> 03:34:57,440
IS THE MUTATION IN THE SINGLE 

5019
03:34:57,440 --> 03:35:05,240
GENE AND NOT TAKING INTO ACCOUNT

5020
03:35:05,240 --> 03:35:36,920
THE LINK.

5021
03:35:36,920 --> 03:35:38,200
THIS MOVES THE CONVERSATION 

5022
03:35:38,200 --> 03:35:38,520
FORWARD.

5023
03:35:38,520 --> 03:35:41,240
>> WE'LL LEAVE IT ON THERE AS 

5024
03:35:41,240 --> 03:35:42,320
POTENTIAL VOTING.

5025
03:35:42,320 --> 03:35:44,960
I HAVE TWO COMMENTS LEFT BUT 

5026
03:35:44,960 --> 03:35:46,360
SUSAN I ALSO REALIZED IT'S 5:00 

5027
03:35:46,360 --> 03:35:47,720
AND WE'RE NOT HALFWAY THROUGH 

5028
03:35:47,720 --> 03:35:49,960
THE SUMMARY OF ADVANCES 

5029
03:35:49,960 --> 03:35:50,240
DISCUSSION.

5030
03:35:50,240 --> 03:35:52,480
SO WE KIND OF HAVE TO END 

5031
03:35:52,480 --> 03:35:53,160
BECAUSE PEOPLE HAVE AN 

5032
03:35:53,160 --> 03:35:55,280
EXPECTATION TO GO.

5033
03:35:55,280 --> 03:35:59,080
WHAT I'D LIKE DO IF IT'S OKAY 

5034
03:35:59,080 --> 03:36:00,400
WITH YOU I TAKE THE LAST THREE 

5035
03:36:00,400 --> 03:36:01,680
COMMENTS AND CLOSE AND WE'LL 

5036
03:36:01,680 --> 03:36:03,440
HAVE TO CONFER HOW TO DO THE 

5037
03:36:03,440 --> 03:36:05,800
REST OF THE WORK WHETHER TO DO 

5038
03:36:05,800 --> 03:36:07,600
IT E-MAIL OR DEVOTE TIME 

5039
03:36:07,600 --> 03:36:08,680
TOMORROW TO IT.

5040
03:36:08,680 --> 03:36:14,800
>> THANKS, WE'LL DO THAT.

5041
03:36:14,800 --> 03:36:21,760
>> OKAY, BE GRIEF.

5042
03:36:21,760 --> 03:36:22,520
ELAINE.

5043
03:36:22,520 --> 03:36:25,440
>> VERY BRIEFLY AND I GUESS THE 

5044
03:36:25,440 --> 03:36:26,440
PAPERS I'M REFERRING TO ARE ON 

5045
03:36:26,440 --> 03:36:30,840
THE NEXT SLIDE.

5046
03:36:30,840 --> 03:36:32,200
>> MOVE FORWARD, PLEASE.

5047
03:36:32,200 --> 03:36:35,240
>> THIS GOES BACK TO MY COMMENT 

5048
03:36:35,240 --> 03:36:36,560
ABOUT WHAT MOVES US FORWARD IN 

5049
03:36:36,560 --> 03:36:38,840
TERMS OF UNDERSTANDING IMPACTS 

5050
03:36:38,840 --> 03:36:48,560
OF ENVIRONMENTAL CHEMICALS ON AS

5051
03:36:48,560 --> 03:36:53,960
PREDICTORS OF AUTISM AND ASK WE 

5052
03:36:53,960 --> 03:36:56,200
THINK OF REMOVING THE O STUDY.

5053
03:36:56,200 --> 03:37:09,560
I THOUGHT IT WAS A NICE ONE.

5054
03:37:09,560 --> 03:37:11,920
WITH YOU PUT THESE FORWARD AND 

5055
03:37:11,920 --> 03:37:13,640
THERE'S PROBABLY MORE HYPOTHESES

5056
03:37:13,640 --> 03:37:17,080
DEVELOPMENT STUDIES IF WE HAD 

5057
03:37:17,080 --> 03:37:20,920
THE OTHER TOOLS -- IF WE HAD THE

5058
03:37:20,920 --> 03:37:25,240
EXPERIMENTAL TOOLS WE CAN 

5059
03:37:25,240 --> 03:37:52,240
UNDERSTAND BETTER.

5060
03:37:52,240 --> 03:37:54,800
>> MAYBE IF REMAINING PEOPLE 

5061
03:37:54,800 --> 03:37:57,840
HAVE COMMENTS UNDER SCORE THAT.

5062
03:37:57,840 --> 03:37:59,920
WE ARE TRYING TO PREMATURELY 

5063
03:37:59,920 --> 03:38:01,760
AVOID A CONCLUSION AS DEFINITIVE

5064
03:38:01,760 --> 03:38:06,160
BY INCLUSION HERE THAN IN THE 

5065
03:38:06,160 --> 03:38:12,280
PAST FOR PRECISELY THIS REASON.

5066
03:38:12,280 --> 03:38:12,480
PAUL.

5067
03:38:12,480 --> 03:38:15,600
>> I WANT TO MAKE SURE THE 

5068
03:38:15,600 --> 03:38:17,240
ARTICLE DOES INDEED KNEW 

5069
03:38:17,240 --> 03:38:18,800
ANALYSES AND NOT JUST A 

5070
03:38:18,800 --> 03:38:19,080
COMMENTARY.

5071
03:38:19,080 --> 03:38:20,960
ON THE OTHER HAND, THE LAST 

5072
03:38:20,960 --> 03:38:24,040
ARTICLE FOR QUESTION ONE ON 

5073
03:38:24,040 --> 03:38:30,840
SCREENING CALLS ITSELF A 

5074
03:38:30,840 --> 03:38:42,040
COMMENTARY.

5075
03:38:42,040 --> 03:38:44,240
AND I WANT TO TALK ABOUT A NEW 

5076
03:38:44,240 --> 03:38:46,120
CLASS OF GENETIC DIFFERENCE.

5077
03:38:46,120 --> 03:38:48,400
MOST ARE FAMILIAR WITH GENETIC 

5078
03:38:48,400 --> 03:38:50,520
DELETIONS OR MUTATIONS WHERE ONE

5079
03:38:50,520 --> 03:38:53,240
BASE PAIR IS SUBSTITUTED FOR 

5080
03:38:53,240 --> 03:38:56,480
ANOTHER AND A CHUNK OF DNA IS 

5081
03:38:56,480 --> 03:38:58,800
DELETED OR DUPLICATED.

5082
03:38:58,800 --> 03:39:02,400
THIS IS A NEW CLASS AND AN 

5083
03:39:02,400 --> 03:39:03,640
ASSOCIATION WITH AUTISM.

5084
03:39:03,640 --> 03:39:04,840
I THOUGHT THIS WAS AN IMPORTANT 

5085
03:39:04,840 --> 03:39:07,760
ADVANCE IN UNDERSTANDING THE 

5086
03:39:07,760 --> 03:39:08,800
GENETICS OF AUTISM.

5087
03:39:08,800 --> 03:39:10,240
>> THANK YOU FOR BRINGING THAT 

5088
03:39:10,240 --> 03:39:10,920
OUT, PAUL.

5089
03:39:10,920 --> 03:39:13,440
UNLESS THERE'S OBJECTIONS GIVEN 

5090
03:39:13,440 --> 03:39:15,760
THE OTHER CALLS ITSELF A 

5091
03:39:15,760 --> 03:39:18,800
COMMENTARY I'LL SUGGEST WE DO 

5092
03:39:18,800 --> 03:39:20,640
REMOVE IT FROM VOTING.

5093
03:39:20,640 --> 03:39:23,080
RAISE YOUR HAND IF YOU OBJECT 

5094
03:39:23,080 --> 03:39:30,840
AND WHILE THAT I'LL GO TO 

5095
03:39:30,840 --> 03:39:38,720
MARINICA.

5096
03:39:38,720 --> 03:39:40,560
>> I'LL OPT NOT TO INCLUDE 

5097
03:39:40,560 --> 03:39:42,800
COMMENTARY EXCEPT IN MATTERS 

5098
03:39:42,800 --> 03:39:47,680
RELATIVE TO UNDER REPRESENTED OR

5099
03:39:47,680 --> 03:39:48,240
MARGINALIZED COMMUNITIES 

5100
03:39:48,240 --> 03:39:50,840
NOTORIOUSLY IGNORED BY 

5101
03:39:50,840 --> 03:39:51,800
RESEARCHERS.

5102
03:39:51,800 --> 03:39:54,840
SOMETIMES GRAY LITERATURE AND 

5103
03:39:54,840 --> 03:39:57,520
COMMENTARY IS ALL ONE HAS AND WE

5104
03:39:57,520 --> 03:39:59,840
COULD DEPRIVE MANY OF ISSUES OF 

5105
03:39:59,840 --> 03:40:00,680
RELEVANCE DISCUSSED.

5106
03:40:00,680 --> 03:40:02,920
I STRONGLY AGREE WITH REMOVING 

5107
03:40:02,920 --> 03:40:05,040
THE TWO PATTY PAPERS AND THE O 

5108
03:40:05,040 --> 03:40:06,480
PAPERS FOR THE REASONS JUST 

5109
03:40:06,480 --> 03:40:07,600
MENTIONED.

5110
03:40:07,600 --> 03:40:14,800
>> THANK YOU VERY MUCH FOR THOSE

5111
03:40:14,800 --> 03:40:18,720
COMMENTS.

5112
03:40:18,720 --> 03:40:20,920
>> I'LL NOTE THAT AND REMOVE IT 

5113
03:40:20,920 --> 03:40:23,800
UNLESS THERE'S REASON TO BRING 

5114
03:40:23,800 --> 03:40:26,360
IT BACK TO YOU AND THANK YOU FOR

5115
03:40:26,360 --> 03:40:28,880
THE ON THE O PAPER AND THE OTHER

5116
03:40:28,880 --> 03:40:30,160
CHEMICAL PAPERS WHICH WE'LL COME

5117
03:40:30,160 --> 03:40:32,480
BACK TO IN ONE WAY SHAPE OR FORM

5118
03:40:32,480 --> 03:40:34,560
WHETHER OVER E-MAIL OR IN 

5119
03:40:34,560 --> 03:40:35,240
PERSON.

5120
03:40:35,240 --> 03:40:36,080
I THANK YOU.

5121
03:40:36,080 --> 03:40:38,440
I APOLOGIZE TO ALL WE HAVE GONE 

5122
03:40:38,440 --> 03:40:39,520
OVER A FEW MINUTES.

5123
03:40:39,520 --> 03:40:40,800
WE OBVIOUSLY HAVE MORE TO DO IN 

5124
03:40:40,800 --> 03:40:42,440
TERMS OF THE WORK ON THE SUMMARY

5125
03:40:42,440 --> 03:40:44,560
OF ADVANCES AND SUSAN AND I WILL

5126
03:40:44,560 --> 03:40:46,080
FIGURE OUT HOW TO ACCOMPLISH 

5127
03:40:46,080 --> 03:40:46,840
THAT.

5128
03:40:46,840 --> 03:40:48,840
I LOOK FORWARD TO SEEING YOU ALL

5129
03:40:48,840 --> 03:40:49,640
TOMORROW AT 1:00.

5130
03:40:49,640 --> 03:40:50,960
>> YES.

5131
03:40:50,960 --> 03:40:51,360
TOMORROW AT 1:00.

5132
03:40:51,360 --> 03:40:52,760
>> OKAY.

5133
03:40:52,760 --> 03:40:53,240
SEE YOU ALL THEN.

5134
03:40:53,240 --> 03:40:53,360
.

5135
03:40:53,360 --> 03:40:53,640
>> THANK YOU.