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>>WELCOME, EVERYONE.

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THANK YOU FOR JOINING US TODAY.

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I'M  JOSHUA GORDON, I'M VERY

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PLEASED FOR YOU TO BE JOINING US

5
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TODAY FOR THIS MEETING OF OUR

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COMMITTEE.

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IT IS AUTISM AWARENESS MONTH,

8
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WHERE WE TAKE TIME TO RECOGNIZE

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THE CONTRIBUTIONS OF PEOPLE ON

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THE AUTISM SPECTRUM TO OUR

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COMMUNITIES.

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WE SPENT A LOT OF TIME IN RECENT

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COMMITTEE MEETINGS DISCUSSING

14
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THE NEEDS OF AUTISTIC PEOPLE

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ACROSS THE SPECTRUM, AND ACROSS

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THE LIFESPAN.

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I WANT TO ASSURE YOU WHAT WE DO

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AT NIMH AS WELL AS ON THIS

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COMMITTEE IS STRIVE TO IMPROVE

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HEALTH AND WELL-BEING FOR ALL

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AUTISTIC PEOPLE AND THEIR

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FAMILIES.

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A LITTLE BIT LATER DURING THIS

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MEETING, YOU'LL HEAR ABOUT

25
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SEVERAL SPECIAL EVENTS HAPPENING

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ACROSS THE GOVERNMENT FOR AUTISM

27
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AWARENESS MONTH.

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YOU'LL HAVE LOTS OF OTHER

29
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OPPORTUNITIES FOR A WONDERFUL

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AGENDA WHICH I'LL BE DESCRIBING

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IN A LITTLE BIT.

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BEFORE I DO THAT THOUGH I WANT

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TO MENTION SOME COMMITTEE MEMBER

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UPDATES.

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MS. DIANA GARCIA REPRESENTED THE

36
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ADMINISTRATION FOR CHILDREN AND

37
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FAMILIES IN THE RECENT PAST,

38
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ACCEPTED A NEW POSITION OUTSIDE

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OF THE FEDERAL GOVERNMENT, SHE

40
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WON'T BE SERVING ON THE IACC.

41
00:01:30,600 --> 00:01:33,200
ALTERNATE MEMBER FROM ACF IS

42
00:01:33,200 --> 00:01:34,520
AMANDA BRYANT WHO WILL CONTINUE

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00:01:34,520 --> 00:01:36,720
TO SERVE UNTIL PERMANENT

44
00:01:36,720 --> 00:01:39,560
REPLACEMENT IS NAMED.

45
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MR. STEVEN WHITTLO, A PUBLIC

46
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MEMBER, HAS ALSO STEPPED DOWN

47
00:01:42,760 --> 00:01:45,280
FROM THE IACC IN MARCH AS HE

48
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RECENTLY ANNOUNCED HIS RUN FOR

49
00:01:47,920 --> 00:01:49,360
THE LOUISIANA STATE LEGISLATURE

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00:01:49,360 --> 00:01:50,200
WHERE HE WOULD CONTINUE TO

51
00:01:50,200 --> 00:01:51,520
SUPPORT EFFORTS TO IMPROVE THE

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00:01:51,520 --> 00:01:54,040
LIVES OF PEOPLE WITH

53
00:01:54,040 --> 00:01:56,200
DISABILITIES IF ELECTED.

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00:01:56,200 --> 00:01:57,920
BOTH DIANA AND STEPHEN EXPRESS

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THEIR APPRECIATION FOR THE

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OPPORTUNITY TO SERVE ON THE

57
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IACC, AND WE WISH THEM WELL IN

58
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THEIR FUTURE ENDEAVORS.

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00:02:07,280 --> 00:02:08,800
DR. JOSEPH PIVEN WILL STEP DOWN

60
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FROM THE COMMITTEE IN THE COMING

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WEEKS, JOE, WOULD YOU LIKE TO

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00:02:13,760 --> 00:02:17,160
SAY A FEW WORDS?

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>>GREAT, THANKS, JOSH.

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YEAH, I JUST WANTED TO THANK ALL

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OF YOU, THE LEADERSHIP, FOR THE

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OPPORTUNITY TO BE PART OF THIS

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COMMITTEE OVER THE LAST TWO

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YEARS ESPECIALLY TO THANK SUSAN

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DANIELS AND HER INCREDIBLE TEAM

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FOR ALL THE HARD WORK THEY HAVE

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DONE AND CONTRIBUTIONS TO THE

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AUTISM COMMUNITY.

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I WISH WE HAD BEEN ABLE TO GET

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TOGETHER FACE TO FACE SO WE

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COULD HAVE FURTHER DEVELOPED OUR

76
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RELATIONSHIPS, BUT HOPEFULLY MY

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PATH WILL CROSS SOME OF YOU IN

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THE FUTURE.

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I THANK YOU AGAIN FOR THIS

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OPPORTUNITY.

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00:02:54,480 --> 00:02:56,600
>>THANK YOU, JOE, FOR
YOUR

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CONTRIBUTIONS TO IACC OVER THE

83
00:02:57,600 --> 00:03:00,880
PAST TWO YEARS AND FOR YOUR

84
00:03:00,880 --> 00:03:01,840
CONTINUING CONTRIBUTIONS TO

85
00:03:01,840 --> 00:03:03,840
SCHOLARSHIP AND TO MAKING THE

86
00:03:03,840 --> 00:03:04,840
WORLD A BETTER PLACE FOR

87
00:03:04,840 --> 00:03:06,400
INDIVIDUALS ON THE SPECTRUM.

88
00:03:06,400 --> 00:03:07,560
WE WISH YOU WELL.

89
00:03:07,560 --> 00:03:08,960
JOSEPH BROUGHT UP THE FACT THAT

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00:03:08,960 --> 00:03:10,400
WE'RE NOT MEETING IN PERSON

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00:03:10,400 --> 00:03:12,360
TODAY, I'LL JUST SAY WE WOULD

92
00:03:12,360 --> 00:03:13,880
HAVE LIKED TO DO SO.

93
00:03:13,880 --> 00:03:15,440
THE MEETING SPACE WE WERE

94
00:03:15,440 --> 00:03:17,440
RELYING ON IS CURRENTLY UNDER

95
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RENOVATION, OH WE -- SO WE HOPE

96
00:03:20,880 --> 00:03:22,160
TO HAVE THAT OPEN FOR THE NEXT

97
00:03:22,160 --> 00:03:23,920
MEETING IN THE FALL.

98
00:03:23,920 --> 00:03:28,440
FINALLY I'D LIKE TO RECOGNIZE

99
00:03:28,440 --> 00:03:36,640
THE NEWLY MINTED DOCTOR ON

100
00:03:36,640 --> 00:03:39,080
COMPLETION OF HER STUDIES,

101
00:03:39,080 --> 00:03:41,000
DISSERTATION, BRINGING FIRE TO

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00:03:41,000 --> 00:03:45,280
THE PEOPLE, AFTER THE

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00:03:45,280 --> 00:03:45,720
SCHOLARSHIP CREATIVE,

104
00:03:45,720 --> 00:03:47,000
INTERNATIONAL ADVOCACY THROUGH

105
00:03:47,000 --> 00:03:50,320
THE LENS OF BLACK DISABILITY

106
00:03:50,320 --> 00:03:51,080
STUDIES IS A WONDERFUL

107
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CONTRIBUTION TO SCHOLARSHIP AND

108
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THE FIELD.

109
00:03:56,000 --> 00:03:56,400
CONGRATULATIONS.

110
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I'M SORRY TO SAY I'M GOING TO BE

111
00:03:59,160 --> 00:04:01,920
STEPPING OFF OF THIS MEETING FOR

112
00:04:01,920 --> 00:04:05,200
A FEW HOURS, I'LL REJOIN YOU FOR

113
00:04:05,200 --> 00:04:06,800
THE PUBLIC COMMENT SECTION OF

114
00:04:06,800 --> 00:04:08,360
THE MEETING.

115
00:04:08,360 --> 00:04:09,600
I'VE HAD AN UNFORTUNATE FAMILY

116
00:04:09,600 --> 00:04:11,880
EMERGENCY THAT I NEED TO ATTEND

117
00:04:11,880 --> 00:04:13,600
TO THROUGHOUT THE DAY.

118
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IN MY PLACE I WANT TO INTRODUCE

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00:04:17,240 --> 00:04:20,080
DR. SHELLI AVENOVOLI, DEPUTY

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DIRECTOR OF NIMH, AND WILL BE

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FILLING IN FOR ME WITH SUSAN

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00:04:26,680 --> 00:04:29,640
DANIELS, DR. SUSAN DANIELS, WHO

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00:04:29,640 --> 00:04:32,720
IS OF COURSE THE DIRECTOR OF THE

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OFFICE OF THE IACC AND THE

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EXECUTIVE SECRETARY FOR THE

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IACC.

127
00:04:36,160 --> 00:04:37,840
SHELLI, WOULD YOU TURN ON YOUR

128
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VIDEO AND BRIEFLY SAY HI?

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00:04:40,120 --> 00:04:41,680
>>HI, GOOD MORNING,
EVERYONE.

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00:04:41,680 --> 00:04:43,560
IT'S MY PLEASURE TO JOIN YOU

131
00:04:43,560 --> 00:04:43,760
TODAY.

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00:04:43,760 --> 00:04:48,120
I LOOK FORWARD TO THE REST OF

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00:04:48,120 --> 00:04:49,240
THE MEETING, AND WELCOME.

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00:04:49,240 --> 00:04:50,680
>>BEFORE I DEPART I DO
WANT TO

135
00:04:50,680 --> 00:04:52,960
GIVE YOU A REVIEW OF THE AGENDA.

136
00:04:52,960 --> 00:04:55,480
WE HAVE SOME REALLY WONDERFUL

137
00:04:55,480 --> 00:04:56,800
PRESENTATIONS FOR YOU TODAY.

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00:04:56,800 --> 00:04:59,880
FIRST, WE'LL HEAR FROM THE

139
00:04:59,880 --> 00:05:01,080
CENTERS FOR DISEASE CONTROL AND

140
00:05:01,080 --> 00:05:03,120
PREVENTION, WHICH HAS RECENTLY

141
00:05:03,120 --> 00:05:06,120
UPDATED THEIR AUTISM PREVALENCE

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00:05:06,120 --> 00:05:08,800
ESTIMATES, ON AN ANNUAL BASIS.

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00:05:08,800 --> 00:05:12,120
WE'LL HEAR AN UPDATE FROM

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NATIONAL AUTISM COORDINATOR, AND

145
00:05:13,520 --> 00:05:15,600
DISCUSS THE IACC COMMITTEE

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00:05:15,600 --> 00:05:17,040
BUSINESS THIS MORNING.

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00:05:17,040 --> 00:05:18,440
IN THE AFTERNOON I'LL REJOIN YOU

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AS I MENTIONED FOR THE PUBLIC

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COMMENT SECTION, AND THEN WE'LL

150
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HAVE A PANEL PRESENTATION ON

151
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INCREASING RACIAL EQUITY AND

152
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IMPROVING DISPARITIES IN AUTISM

153
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OUTCOMES.

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WITH THAT I'LL SAY FAREWELL FOR

155
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NOW AND TURN IT OVER TO SUSAN

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WHO HAS HER OWN OPENING REMARKS

157
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AND ROLL CALL AND APPROVAL OF

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MINUTES.

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>>THANK YOU, JOSH.

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SO, WELCOME, EVERYONE, TO OUR

161
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APRIL IACC MEETING, AND OUR TIME

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TO RECOGNIZE AUTISM AWARENESS

163
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MONTH.

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A TIME THAT WE PROMOTE

165
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ACCEPTANCE AND INCLUSION OF ALL

166
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AUTISTIC PEOPLE AND TAKE ACTION

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TO ADDRESS NEEDS OF AUTISTIC

168
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INDIVIDUALS AND THEIR FAMILIES.

169
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WITH THE GOAL OF IMPROVING

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OUTCOMES.

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AS DR. GORDON SAID, WE HAVE A

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FULL AGENDA TODAY WITH UPDATES

173
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FROM THE CDC, FEDERAL AGENCIES

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AND PARTNER ORGANIZATIONS,

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COMMITTEE BUSINESS, AND A

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DISCUSSION THIS AFTERNOON ON

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RACE AND AUTISM.

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WE LOOK FORWARD TO HEARING FROM

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ALL OF OUR SPEAKERS AND OUR

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PUBLIC COMMENTERS TODAY.

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I'LL MAKE A FEW HOUSEKEEPING

182
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ANNOUNCEMENTS.

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WE WANT TO REMIND MEMBERS TO

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KEEP YOUR MICROPHONES OFF UNLESS

185
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YOU'RE SPEAKING, ALSO KEEP YOUR

186
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CAMERAS OFF DURING PRESENTATIONS

187
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AND BREAKS.

188
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YOU'RE WELCOME TO TURN ON YOUR

189
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CAMERAS DURING COMMITTEE

190
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DISCUSSIONS OR WHEN YOU'RE

191
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RAISING YOUR HAND TO SPEAK.

192
00:06:35,680 --> 00:06:37,720
AND IF YOU'RE A COMMITTEE MEMBER

193
00:06:37,720 --> 00:06:38,840
OR FEDERAL ALTERNATE WHO WOULD

194
00:06:38,840 --> 00:06:40,600
LIKE TO CONTRIBUTE A WRITTEN

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COMMENT DURING OUR DISCUSSION

196
00:06:42,320 --> 00:06:43,560
PERIODS, PLEASE USE THE ZOOM

197
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RAISE HAND FUNCTION TO LET US

198
00:06:46,360 --> 00:06:48,240
KNOW YOU'D LIKE TO COMMENT,

199
00:06:48,240 --> 00:06:50,880
AND/OR SEND A CHAT TO SEND

200
00:06:50,880 --> 00:06:53,160
COMMENTS HERE WITHIN THE ZOOM

201
00:06:53,160 --> 00:06:54,560
CHAT, AND THAT COMMENT WILL BE

202
00:06:54,560 --> 00:06:58,320
PICKED UP BY A MEMBER OF OUR

203
00:06:58,320 --> 00:06:59,080
STAFF, MR. STEPHEN ISAACSON, WHO

204
00:06:59,080 --> 00:07:01,040
YOU'VE SEEN AT OUR PREVIOUS

205
00:07:01,040 --> 00:07:03,480
MEETINGS, WHO WILL READ YOUR

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CHAT INTO THE MEETING FOR US SO

207
00:07:05,880 --> 00:07:07,760
THAT EVERYONE ON NIH VIDEOCAST

208
00:07:07,760 --> 00:07:10,720
CAN ALSO HEAR WHAT THE COMMENT

209
00:07:10,720 --> 00:07:11,120
IS.

210
00:07:11,120 --> 00:07:12,720
SO, NOW I'D LIKE TO GO THROUGH A

211
00:07:12,720 --> 00:07:19,160
ROLL CALL SO WE KNOW WHO IS HERE

212
00:07:19,160 --> 00:07:21,400
TODAY.

213
00:07:21,400 --> 00:07:24,120
SO, WE JUST SAW DR. JOSHUA

214
00:07:24,120 --> 00:07:28,320
GORDON, AND DR. SHELLI AVENOVOLI

215
00:07:28,320 --> 00:07:28,600
FOR NIMH.

216
00:07:28,600 --> 00:07:34,640
NEXT I'D LIKE TO CALL ON SKY

217
00:07:34,640 --> 00:07:35,560
BASS FROM THE INDIAN HEALTH

218
00:07:35,560 --> 00:07:35,800
SERVICE.

219
00:07:35,800 --> 00:07:42,480
>>I'M HERE, GOOD MORNING,

220
00:07:42,480 --> 00:07:42,720
EVERYONE.

221
00:07:42,720 --> 00:07:45,720
>>GOOD MORNING. 

222
00:07:45,720 --> 00:07:47,400
ALICE KAU FOR NICHD.

223
00:07:47,400 --> 00:07:49,280
>>HERE.

224
00:07:49,280 --> 00:07:53,600
>>THANK YOU.

225
00:07:53,600 --> 00:07:54,560
AMANDA BRYANTS FOR ACF?

226
00:07:54,560 --> 00:07:57,920
>>HI, THANK YOU FOR THE
NICE

227
00:07:57,920 --> 00:07:58,400
WELCOME.

228
00:07:58,400 --> 00:08:01,120
I'M VERY GLAD TO BE HERE.

229
00:08:01,120 --> 00:08:02,320
>>THANK YOU, AMANDA.

230
00:08:02,320 --> 00:08:06,160
GLAD TO HAVE YOU WITH US.

231
00:08:06,160 --> 00:08:08,760
MITCHELL BERGER, ALTERNATE FOR

232
00:08:08,760 --> 00:08:10,080
ANITA AT SAMHSA.

233
00:08:10,080 --> 00:08:11,960
>>YES, I'M HERE.

234
00:08:11,960 --> 00:08:16,280
>>THANK YOU, MITCHELL.

235
00:08:16,280 --> 00:08:17,080
TIFFANY FARTIONE, FDA?

236
00:08:17,080 --> 00:08:20,480
>>GOOD MORNING, I'M HERE.

237
00:08:20,480 --> 00:08:22,960
>>THANK YOU.

238
00:08:22,960 --> 00:08:27,280
MARIA FRYER FROM DEPARTMENT OF

239
00:08:27,280 --> 00:08:27,760
JUSTICE?

240
00:08:27,760 --> 00:08:29,480
>>GOOD MORNING, EVERYONE.

241
00:08:29,480 --> 00:08:30,680
THANK YOU, I'M HERE.

242
00:08:30,680 --> 00:08:35,800
GOOD TO BE HERE. 

243
00:08:35,800 --> 00:08:37,520
>>THANK YOU.

244
00:08:37,520 --> 00:08:38,640
ELAINE HUBBLE, EPA?

245
00:08:38,640 --> 00:08:40,640
>>GOOD MORNING, THANK
YOU.

246
00:08:40,640 --> 00:08:41,800
HAPPY TO BE HERE.

247
00:08:41,800 --> 00:08:44,000
>>THANK YOU.

248
00:08:44,000 --> 00:08:47,040
AND AMANDA RYKER FROM ACL, THE

249
00:08:47,040 --> 00:08:48,120
ALTERNATE FOR ACL.

250
00:08:48,120 --> 00:08:50,880
>>GOOD MORNING, I'M HERE.

251
00:08:50,880 --> 00:08:53,440
>>THANK YOU.

252
00:08:53,440 --> 00:08:59,120
AND DR. CHRISTY HARDEE,

253
00:08:59,120 --> 00:09:01,400
ALTERNATE FOR NINDS.

254
00:09:01,400 --> 00:09:04,040
OR FOR KOROSHETZ FROM NINDS, I

255
00:09:04,040 --> 00:09:06,000
THINK DR. KOROSHETZ IS GOING TO

256
00:09:06,000 --> 00:09:09,200
BE HERE PART OF THE DAY.

257
00:09:09,200 --> 00:09:16,640
MAYBE NOT LOGGED ON YET.

258
00:09:16,640 --> 00:09:18,080
MIA MOSER FROM HUD?

259
00:09:18,080 --> 00:09:18,480
>>GOOD MORNING.

260
00:09:18,480 --> 00:09:21,400
>>AND DEREA WILL JOIN US
LATER?

261
00:09:21,400 --> 00:09:21,800
>>THAT'S CORRECT.

262
00:09:21,800 --> 00:09:22,480
>>GREAT.

263
00:09:22,480 --> 00:09:22,920
THANK YOU.

264
00:09:22,920 --> 00:09:26,880
>>HI, THIS IS WALTER
KOROSHETZ,

265
00:09:26,880 --> 00:09:27,720
NINDS.

266
00:09:27,720 --> 00:09:31,560
SORRY, I HAD TROUBLE FINDING THE

267
00:09:31,560 --> 00:09:32,080
RIGHT BUTTONS.

268
00:09:32,080 --> 00:09:36,960
>>GLAD YOU'RE HERE. 

269
00:09:36,960 --> 00:09:37,800
ALLISON MARVIN FROM SSA?

270
00:09:37,800 --> 00:09:41,320
>>GOOD MORNING, THANK YOU
FOR

271
00:09:41,320 --> 00:09:41,600
HAVING US.

272
00:09:41,600 --> 00:09:45,040
>>THANK YOU, ALLISON.

273
00:09:45,040 --> 00:09:45,400
MATTHEW MILLER?

274
00:09:45,400 --> 00:09:46,880
>>HI, SCOTT PATTERSON
HERE FOR

275
00:09:46,880 --> 00:09:47,200
MATT MILLER.

276
00:09:47,200 --> 00:09:55,040
>>FROM THE V.A., THANK
YOU.

277
00:09:55,040 --> 00:09:55,840
CAMILLA MYSTERY?

278
00:09:55,840 --> 00:09:56,080
>>HERE.

279
00:09:56,080 --> 00:09:57,720
>>THANKS.

280
00:09:57,720 --> 00:10:01,720
THANK YOU. 

281
00:10:01,720 --> 00:10:02,360
LAUREN RASKIN RAMOS?

282
00:10:02,360 --> 00:10:05,400
>>GOOD MORNING, I'M HERE.

283
00:10:05,400 --> 00:10:10,600
>>THANK YOU.

284
00:10:10,600 --> 00:10:11,560
KARYL RATTAY?

285
00:10:11,560 --> 00:10:18,160
>>HI, EVERYONE.

286
00:10:18,160 --> 00:10:22,040
>>HI. 

287
00:10:22,040 --> 00:10:22,240
KARYL.

288
00:10:22,240 --> 00:10:22,840
JODY SIRACKI?

289
00:10:22,840 --> 00:10:26,520
>>HI, GOOD MORNING.

290
00:10:26,520 --> 00:10:28,840
>>GOOD MORNING.

291
00:10:28,840 --> 00:10:29,800
FROM CMS.

292
00:10:29,800 --> 00:10:32,880
COURTNEY FARRELL FROM NIH OFFICE

293
00:10:32,880 --> 00:10:40,560
OF THE DIRECTOR? 

294
00:10:40,560 --> 00:10:41,760
OR COURTNEY FARRELL ACLAND.

295
00:10:41,760 --> 00:10:43,320
AND I HAVE A NOTE COURTNEY WILL

296
00:10:43,320 --> 00:10:45,600
BE HERE PART OF THE DAY, MIGHT

297
00:10:45,600 --> 00:10:52,400
NOT BE LOGGED ON YET, AND JUDITH

298
00:10:52,400 --> 00:10:52,640
COOPER?

299
00:10:52,640 --> 00:10:56,080
>>YES, I'M HERE, BUT DEB
IS

300
00:10:56,080 --> 00:10:57,040
ALSO HERE.

301
00:10:57,040 --> 00:10:57,280
>>OH.

302
00:10:57,280 --> 00:10:57,720
>>YES, HELLO.

303
00:10:57,720 --> 00:11:02,760
>>NICE TO SEE YOU.

304
00:11:02,760 --> 00:11:04,720
THANK YOU.

305
00:11:04,720 --> 00:11:05,520
DEBARA TUCCI.

306
00:11:05,520 --> 00:11:06,920
LARRY WEXLER, DEPARTMENT OF

307
00:11:06,920 --> 00:11:07,200
EDUCATION?

308
00:11:07,200 --> 00:11:08,560
>>GOOD MORNING, YES, I'M
HERE.

309
00:11:08,560 --> 00:11:11,640
>>GOOD MORNING, LARRY.

310
00:11:11,640 --> 00:11:13,840
NICOLE WILLIAMS FROM DEPARTMENT

311
00:11:13,840 --> 00:11:23,440
OF DEFENSE? 

312
00:11:23,440 --> 00:11:25,640
AND I BELIEVE NICOLE IS HERE

313
00:11:25,640 --> 00:11:27,000
BECAUSE WE WERE E-MAIL EARLIER

314
00:11:27,000 --> 00:11:28,240
BUT PLAY NOT HAVE HER SOUND

315
00:11:28,240 --> 00:11:31,000
WORKING OR SOMETHING RIGHT NOW.

316
00:11:31,000 --> 00:11:32,280
SCOTT MICHAEL ROBERTSON,

317
00:11:32,280 --> 00:11:33,080
DEPARTMENT OF LABOR?

318
00:11:33,080 --> 00:11:37,120
>>GOOD MORNING, HAPPY
NATIONAL

319
00:11:37,120 --> 00:11:37,480
AUTISM MONTH.

320
00:11:37,480 --> 00:11:37,800
>>THANK YOU!

321
00:11:37,800 --> 00:11:39,240
>>THANKS.

322
00:11:39,240 --> 00:11:42,520
>>SAME TO YOU.

323
00:11:42,520 --> 00:11:44,960
AND CINDY LAWLER FOR NIEHS?

324
00:11:44,960 --> 00:11:47,360
>>HI, EVERYONE, I'M HERE
TODAY.

325
00:11:47,360 --> 00:11:48,120
>>THANK YOU.

326
00:11:48,120 --> 00:11:51,920
AND THEN WE'LL GO THROUGH THE

327
00:11:51,920 --> 00:11:54,800
PUBLIC MEMBER LIST.

328
00:11:54,800 --> 00:11:55,560
MARIA MERCEDES AVILLA?

329
00:11:55,560 --> 00:12:00,360
>>GOOD MORNING, I'M HERE.

330
00:12:00,360 --> 00:12:01,440
>>ALICE CARTER?

331
00:12:01,440 --> 00:12:02,280
>>HERE, GOOD MORNING.

332
00:12:02,280 --> 00:12:07,360
>>GOOD MORNING.

333
00:12:07,360 --> 00:12:08,120
SAM CRANE?

334
00:12:08,120 --> 00:12:10,080
AND I THINK THAT I DON'T HAVE A

335
00:12:10,080 --> 00:12:12,080
NOTE SHE'S PLANNING TO BE HERE,

336
00:12:12,080 --> 00:12:14,120
SHE MIGHT HAVE HAD SOMETHING

337
00:12:14,120 --> 00:12:17,360
ELSE COME UP.

338
00:12:17,360 --> 00:12:18,040
AISHA DICKERSON?

339
00:12:18,040 --> 00:12:19,840
>>GOOD MORNING, I'M HERE.

340
00:12:19,840 --> 00:12:24,120
>>GOOD MORNING.

341
00:12:24,120 --> 00:12:25,120
DINA GASNER.

342
00:12:25,120 --> 00:12:26,320
>>I'M HERE, THANKS.

343
00:12:26,320 --> 00:12:33,040
>>THANK YOU.

344
00:12:33,040 --> 00:12:33,440
VERONICA.

345
00:12:33,440 --> 00:12:34,720
>>THEY SAID THEY ARE
HERE.

346
00:12:34,720 --> 00:12:37,880
>>THANK YOU.

347
00:12:37,880 --> 00:12:38,880
ALICIA HALLADAY?

348
00:12:38,880 --> 00:12:40,440
AND ALICIA IS ACTUALLY PLANNING

349
00:12:40,440 --> 00:12:42,720
TO LOG ON FROM AN AIRPLANE, SO

350
00:12:42,720 --> 00:12:46,000
MAY NOT BE SPEAKING, MIGHT BE

351
00:12:46,000 --> 00:12:49,720
TEXTING MORE THROUGHOUT THE

352
00:12:49,720 --> 00:12:50,360
MEETING.

353
00:12:50,360 --> 00:12:52,360
DEANNA MEYER?

354
00:12:52,360 --> 00:12:55,280
>>GOOD MORNING, EVERYONE,
I'M

355
00:12:55,280 --> 00:12:55,520
PRESENT.

356
00:12:55,520 --> 00:12:59,800
>>THANK YOU.

357
00:12:59,800 --> 00:13:00,160
LINDSEY NEBEKER?

358
00:13:00,160 --> 00:13:02,600
>>HI, GOOD MORNING,
EVERYONE,

359
00:13:02,600 --> 00:13:03,600
I'M HERE.

360
00:13:03,600 --> 00:13:08,640
>>GOOD MORNING.

361
00:13:08,640 --> 00:13:08,920
JENNY MYFAM?

362
00:13:08,920 --> 00:13:13,000
>>I'M HERE, GOOD MORNING,

363
00:13:13,000 --> 00:13:13,280
EVERYONE.

364
00:13:13,280 --> 00:13:19,400
>>GOOD MORNING.

365
00:13:19,400 --> 00:13:21,960
JOSEPH PIVEN?

366
00:13:21,960 --> 00:13:22,360
>>GOOD MORNING.

367
00:13:22,360 --> 00:13:23,600
>>GOOD MORNING FROM THE

368
00:13:23,600 --> 00:13:25,400
WASHINGTON, D.C. AREA ON A

369
00:13:25,400 --> 00:13:25,880
BEAUTIFUL SPRING DAY!

370
00:13:25,880 --> 00:13:32,800
>>THANK YOU SO MUCH,
JAYLIN. 

371
00:13:32,800 --> 00:13:33,400
WELCOME.

372
00:13:33,400 --> 00:13:35,640
SUSAN RIVERA?

373
00:13:35,640 --> 00:13:36,600
>>GOOD MORNING.

374
00:13:36,600 --> 00:13:36,800
HERE.

375
00:13:36,800 --> 00:13:41,360
>>GOOD TO SEE YOU.

376
00:13:41,360 --> 00:13:42,800
MATTHEW SEGAL?

377
00:13:42,800 --> 00:13:45,520
>>HERE.

378
00:13:45,520 --> 00:13:49,360
>>HELLO. 

379
00:13:49,360 --> 00:13:50,400
IVANOVA SMITH?

380
00:13:50,400 --> 00:13:51,920
>>HELLO, I'M HERE.

381
00:13:51,920 --> 00:13:59,240
>>THANK YOU.

382
00:13:59,240 --> 00:14:03,800
HARI SHRINOVASN?

383
00:14:03,800 --> 00:14:04,000
>>HI.

384
00:14:04,000 --> 00:14:04,280
>>HELEN?

385
00:14:04,280 --> 00:14:07,680
>>THANKS FOR A TERRIFIC
PROGRAM

386
00:14:07,680 --> 00:14:08,320
FOR THE DAY.

387
00:14:08,320 --> 00:14:13,160
>>LOOKING FORWARD TO IT.

388
00:14:13,160 --> 00:14:14,040
THANK YOU.

389
00:14:14,040 --> 00:14:14,360
JULIE TAYLOR?

390
00:14:14,360 --> 00:14:15,000
>>GOOD MORNING,
EVERYBODY.

391
00:14:15,000 --> 00:14:19,400
>>GOOD MORNING. 

392
00:14:19,400 --> 00:14:20,480
AND LASTLY, PAUL WONG.

393
00:14:20,480 --> 00:14:21,680
>>GOOD MORNING, SUSAN.

394
00:14:21,680 --> 00:14:22,280
GOOD MORNING, ALL.

395
00:14:22,280 --> 00:14:23,080
>>GOOD MORNING.

396
00:14:23,080 --> 00:14:28,320
AND DID I MISS ANYBODY?

397
00:14:28,320 --> 00:14:29,320
ALL RIGHT.

398
00:14:29,320 --> 00:14:31,640
SO, THAT CONCLUDES THE ROLL

399
00:14:31,640 --> 00:14:31,840
CALL.

400
00:14:31,840 --> 00:14:34,440
NOW WE'LL MOVE TO APPROVAL OF

401
00:14:34,440 --> 00:14:36,480
MINUTES FROM JANUARY 2023

402
00:14:36,480 --> 00:14:36,960
MEETING.

403
00:14:36,960 --> 00:14:38,320
SO, THE DRAFT MINUTES WERE

404
00:14:38,320 --> 00:14:40,280
POSTED ON THE WEB AND SENT OUT

405
00:14:40,280 --> 00:14:46,280
TO MEMBERS OF THE COMMITTEE, AND

406
00:14:46,280 --> 00:14:47,880
I WANTED TO KNOW IF SOMEBODY

407
00:14:47,880 --> 00:14:49,600
WOULD LIKE TO PUT A MOTION ON

408
00:14:49,600 --> 00:14:57,680
THE FLOOR TO APPROVE THE MINUTE.

409
00:14:57,680 --> 00:14:59,240
OR IF THERE ARE ANY COMMENTS OR

410
00:14:59,240 --> 00:15:00,440
QUESTIONS ABOUT THE MINUTES, ANY

411
00:15:00,440 --> 00:15:06,160
CHANGES THAT ARE NEEDED?

412
00:15:06,160 --> 00:15:07,760
WHICH ALSO YOU CAN FEEL FREE TO

413
00:15:07,760 --> 00:15:09,960
SEND THEM TOO IF YOU NEED TO, IF

414
00:15:09,960 --> 00:15:11,000
THEY ARE MINOR.

415
00:15:11,000 --> 00:15:12,840
>>THERE'S A MOTION IN THE

416
00:15:12,840 --> 00:15:13,400
COMMENTS, SUSAN.

417
00:15:13,400 --> 00:15:14,160
>>OKAY.

418
00:15:14,160 --> 00:15:14,680
WONDERFUL.

419
00:15:14,680 --> 00:15:18,800
THANK YOU, I DIDN'T SEE IT.

420
00:15:18,800 --> 00:15:19,920
>>SECOND THE MOTION.

421
00:15:19,920 --> 00:15:20,280
>>PERFECT.

422
00:15:20,280 --> 00:15:22,680
ALL IN FAVOR CAN YOU PLEASE

423
00:15:22,680 --> 00:15:28,080
RAISE YOUR HAND IN ZOOM? 

424
00:15:28,080 --> 00:15:37,240
AND MEMBERS OF OUR TEAM WILL

425
00:15:37,240 --> 00:15:47,600
JUST WATCH FOR THAT.

426
00:15:48,480 --> 00:15:50,800
ALL RIGHT.

427
00:15:50,800 --> 00:15:53,080
SO, ARE WE GOOD THERE WITH THE

428
00:15:53,080 --> 00:15:53,320
TEAM?

429
00:15:53,320 --> 00:15:55,280
SO IS THERE ANYONE WHO IS

430
00:15:55,280 --> 00:15:55,840
OPPOSED?

431
00:15:55,840 --> 00:15:58,040
YOU CAN PUT YOUR HANDS DOWN.

432
00:15:58,040 --> 00:16:01,880
AND THEN WE WILL ASK IF ANYONE

433
00:16:01,880 --> 00:16:06,320
IS OPPOSED TO ACCEPTING THE

434
00:16:06,320 --> 00:16:06,920
MINUTES.

435
00:16:06,920 --> 00:16:10,840
AND DEBRAS YOUR HAND STILL UP

436
00:16:10,840 --> 00:16:12,720
FROM BEFORE OR IS IT OPPOSED?

437
00:16:12,720 --> 00:16:14,560
OH, THAT'S DOWN.

438
00:16:14,560 --> 00:16:14,760
OKAY.

439
00:16:14,760 --> 00:16:16,560
IS ANYONE OPPOSED TO ACCEPTING

440
00:16:16,560 --> 00:16:17,320
THE MINUTES?

441
00:16:17,320 --> 00:16:19,800
I DON'T SEE ANY HANDS.

442
00:16:19,800 --> 00:16:22,800
IS ANYONE ABSTAINING FROM

443
00:16:22,800 --> 00:16:24,560
COMMENTING ON THE MINUTES OR

444
00:16:24,560 --> 00:16:25,720
VOTING FOR THE MINUTES?

445
00:16:25,720 --> 00:16:28,040
NO, LOOKS LIKE A MAJORITY VOTED

446
00:16:28,040 --> 00:16:31,760
TO ACCEPT THE MINUTES.

447
00:16:31,760 --> 00:16:33,360
OH, IVANOVA YOU'RE ABSTAINING.

448
00:16:33,360 --> 00:16:33,760
ONE ABSTENTION.

449
00:16:33,760 --> 00:16:39,400
>>NO, I'M NOT. 

450
00:16:39,400 --> 00:16:40,040
I'M SUPPORTING.

451
00:16:40,040 --> 00:16:40,440
>>OH, SUPPORTING.

452
00:16:40,440 --> 00:16:42,040
>>SORRY, I THOUGHT THAT'S
WHAT

453
00:16:42,040 --> 00:16:43,720
I WAS SUPPOSED TO PRESS.

454
00:16:43,720 --> 00:16:44,680
>>IT'S CHALLENGING
SOMETIMES.

455
00:16:44,680 --> 00:16:46,080
LOOKS LIKE THE MAJORITY OF THE

456
00:16:46,080 --> 00:16:47,320
COMMITTEE HAS VOTED TO ACCEPT

457
00:16:47,320 --> 00:16:49,600
THE MINUTES SO WE'RE GOING TO

458
00:16:49,600 --> 00:16:51,400
APPROVE THE MINUTES, AND IF

459
00:16:51,400 --> 00:16:52,600
THERE ARE ANY OTHER MINOR

460
00:16:52,600 --> 00:16:54,000
CHANGES YOU CAN ALWAYS SEND THEM

461
00:16:54,000 --> 00:16:55,680
OUR WAY BUT WE WILL GET THE

462
00:16:55,680 --> 00:16:57,400
FINAL MINUTES POSTED ON THE

463
00:16:57,400 --> 00:16:59,880
WEBSITE AFTER THIS MEETING.

464
00:16:59,880 --> 00:17:00,440
SO THANK YOU.

465
00:17:00,440 --> 00:17:04,040
AND SO NOW I WILL TURN IT BACK

466
00:17:04,040 --> 00:17:06,240
TO DR. AVENEVOLI TO INTRODUCE

467
00:17:06,240 --> 00:17:08,040
OUR SPEAKERS FOR THE MORNING.

468
00:17:08,040 --> 00:17:08,880
>>WONDERFUL.

469
00:17:08,880 --> 00:17:09,520
THANKS, SUSAN.

470
00:17:09,520 --> 00:17:11,840
LET'S GET STARTED WITH OUR

471
00:17:11,840 --> 00:17:12,600
AGENDA.

472
00:17:12,600 --> 00:17:17,160
SO, AS MANY OF YOU KNOW THE CDC

473
00:17:17,160 --> 00:17:19,160
ADMM NETWORK HAS BEEN MONITORING

474
00:17:19,160 --> 00:17:20,560
AUTISM PREVALENCE ACROSS THE

475
00:17:20,560 --> 00:17:22,560
UNITED STATES SINCE 2000.

476
00:17:22,560 --> 00:17:24,960
LAST MONTH, THE CDC RELEASED

477
00:17:24,960 --> 00:17:27,360
UPDATED ESTIMATES OF AUTISM

478
00:17:27,360 --> 00:17:29,160
PREVALENCE IN 8-YEAR-OLD AND

479
00:17:29,160 --> 00:17:31,080
4-YEAR-OLD CHILDREN, AND HERE TO

480
00:17:31,080 --> 00:17:35,680
DISCUSS THE LATEST FINDINGS WITH

481
00:17:35,680 --> 00:17:41,880
US TODAY IS DR. KARYL RATTAY,

482
00:17:41,880 --> 00:17:43,760
AND DIRECTOR OF DIVISION OF

483
00:17:43,760 --> 00:17:49,040
HUMAN DEVELOPMENT AND

484
00:17:49,040 --> 00:17:50,000
DISABILITY, AND IACC MEMBER, AND

485
00:17:50,000 --> 00:17:54,240
TWO MEMBERS OF THE TEAM, DR.

486
00:17:54,240 --> 00:18:00,280
MATTHEW MAENNER, CHIEF OF THE

487
00:18:00,280 --> 00:18:02,680
CHILD DEVELOPMENT BRANCH AND DR.

488
00:18:02,680 --> 00:18:07,520
KELLY SHAW, ACTING TEAM LEAD,

489
00:18:07,520 --> 00:18:08,280
DISABILITY BRANCH, WE LOOK

490
00:18:08,280 --> 00:18:13,280
FORWARD TO HEARING FROM YOU.

491
00:18:13,280 --> 00:18:14,720
OUR PRESENTATION WILL BE 40 TO

492
00:18:14,720 --> 00:18:16,840
45 MINUTES AND WE'LL ALLOW 15 TO

493
00:18:16,840 --> 00:18:17,920
20 MINUTES FOR Q&A.

494
00:18:17,920 --> 00:18:20,320
SO WE WANT TO SAVE TIME FOR

495
00:18:20,320 --> 00:18:21,200
QUESTIONS AND ANSWERS.

496
00:18:21,200 --> 00:18:23,720
THANK YOU ALL.

497
00:18:23,720 --> 00:18:24,120
THANKS, KARYL.

498
00:18:24,120 --> 00:18:25,040
>>THANK YOU, KELLY.

499
00:18:25,040 --> 00:18:28,120
I HAVE THE GREAT PLEASURE OF

500
00:18:28,120 --> 00:18:34,000
GETTING TO KICK US OFF WITH THIS

501
00:18:34,000 --> 00:18:34,560
DISCUSSION.

502
00:18:34,560 --> 00:18:36,840
I AM REALLY HAPPY TO GET TO

503
00:18:36,840 --> 00:18:38,200
INTRODUCE YOU TO TWO AMAZING

504
00:18:38,200 --> 00:18:39,920
MEMBERS OF THE CDC TEAM, AS MANY

505
00:18:39,920 --> 00:18:44,040
OF YOU KNOW I JUST JOINED CDC BE

506
00:18:44,040 --> 00:18:45,600
IN OCTOBER, BUT AM INCREDIBLY

507
00:18:45,600 --> 00:18:47,360
IMPRESSED AND PROUD OF THE WORK

508
00:18:47,360 --> 00:18:50,000
THAT THEY HAVE DONE AROUND ADAM

509
00:18:50,000 --> 00:18:52,520
OVER THE PAST FEW YEARS

510
00:18:52,520 --> 00:18:56,760
ESPECIALLY THE LAST FIVE YEARS,

511
00:18:56,760 --> 00:18:59,560
AND WHILE I'VE KNOWN DR. MATT

512
00:18:59,560 --> 00:19:00,840
MAENNER ENOUGH IN THE LAST FIVE

513
00:19:00,840 --> 00:19:03,040
MONTHS TO KNOW HE'S NOT THE TYPE

514
00:19:03,040 --> 00:19:09,280
TO BRAG ABOUT HIS OWN WORK, I

515
00:19:09,280 --> 00:19:10,800
REALLY WANTED TO HIGHLIGHT A

516
00:19:10,800 --> 00:19:14,360
TREMENDOUS MILESTONE OF THIS

517
00:19:14,360 --> 00:19:15,760
RECENT RELEASE, WHICH MANY OF

518
00:19:15,760 --> 00:19:18,880
YOU I THINK ARE AWARE OF, THE

519
00:19:18,880 --> 00:19:21,480
WORK THIS TEAM HAS DONE TO

520
00:19:21,480 --> 00:19:25,840
DECREASE THE TIME IT TAKES TO

521
00:19:25,840 --> 00:19:28,040
GET THE DATA PUBLISHED AND TO

522
00:19:28,040 --> 00:19:29,000
THE PUBLIC.

523
00:19:29,000 --> 00:19:31,120
SO THE BIG MILESTONE HERE IS

524
00:19:31,120 --> 00:19:32,760
THROUGH THE WORK OF THIS TEAM

525
00:19:32,760 --> 00:19:34,040
AND CHANGING THE METHODS THEY

526
00:19:34,040 --> 00:19:38,640
HAVE BEEN ABLE TO SHAVE OFF AN

527
00:19:38,640 --> 00:19:41,040
ENTIRE YEAR FROM THE END OF THE

528
00:19:41,040 --> 00:19:42,440
YEAR OF DATA COLLECTION TO THE

529
00:19:42,440 --> 00:19:48,640
TIME IT MAKES IT OUT TO THE

530
00:19:48,640 --> 00:19:50,000
PUBLIC, WHICH IS TREMENDOUS.

531
00:19:50,000 --> 00:19:51,240
GOING BACK FIVE YEARS, I KNOW

532
00:19:51,240 --> 00:19:54,840
SOME OF YOU WERE INVOLVED IN THE

533
00:19:54,840 --> 00:19:55,800
DISCUSSIONS, THEY WERE HEARING

534
00:19:55,800 --> 00:20:00,720
THAT THERE WAS A NEED TO GET THE

535
00:20:00,720 --> 00:20:04,480
INFORMATION OUT MORE QUICKLY,

536
00:20:04,480 --> 00:20:05,640
WHICH REALLY DROVE DISCUSSIONS

537
00:20:05,640 --> 00:20:09,240
AND THINKING AROUND A CHANGE IN

538
00:20:09,240 --> 00:20:11,560
METHODOLOGY, AND USING MORE

539
00:20:11,560 --> 00:20:20,840
ADMINISTRATIVE DATA THAT WERE

540
00:20:20,840 --> 00:20:22,360
AVAILABLE, LIKE EDUCATION DATA,

541
00:20:22,360 --> 00:20:23,920
AND CLAIMS DATA, HEALTH DATA,

542
00:20:23,920 --> 00:20:24,680
RATHER THAN REQUIRING EVERY

543
00:20:24,680 --> 00:20:28,080
CHILD IN THE SYSTEM TO HAVE A

544
00:20:28,080 --> 00:20:29,600
PROVIDER, AN INDIVIDUAL PROVIDER

545
00:20:29,600 --> 00:20:34,680
IN THE ADAM SYSTEM DIAGNOSING

546
00:20:34,680 --> 00:20:34,880
THEM.

547
00:20:34,880 --> 00:20:37,160
AND THERE WERE CONCERNS AS THEY

548
00:20:37,160 --> 00:20:38,560
WERE THINKING THROUGH THIS, AND

549
00:20:38,560 --> 00:20:40,360
JUST REALLY PROUD OF HOW ALL OF

550
00:20:40,360 --> 00:20:42,640
THE PARTNERS AGAIN INCLUDING

551
00:20:42,640 --> 00:20:47,560
MANY OF YOU CAME TOGETHER TO

552
00:20:47,560 --> 00:20:49,560
UNDERSTAND THE CHANGES IN

553
00:20:49,560 --> 00:20:50,840
METHODS AND WHAT IT MEANT, AS

554
00:20:50,840 --> 00:20:53,120
THE TEAM WAS DOING THIS WORK

555
00:20:53,120 --> 00:20:58,280
THEY WERE ABLE TO VALIDATE THAT

556
00:20:58,280 --> 00:20:59,600
THE CHANGE IN METHODS WERE

557
00:20:59,600 --> 00:21:03,080
SHOWING SIMILAR RESULTS BUT ALSO

558
00:21:03,080 --> 00:21:06,080
SHOWING MUCH INCREASED

559
00:21:06,080 --> 00:21:07,720
EFFICIENCY, SO 50% DECREASE IN

560
00:21:07,720 --> 00:21:09,000
EFFORTS TO COLLECT THE DATA,

561
00:21:09,000 --> 00:21:10,880
WHICH IS ALSO NOT ONLY

562
00:21:10,880 --> 00:21:13,080
DECREASING THE TIME FOR

563
00:21:13,080 --> 00:21:17,560
PUBLICATION BUT ALSO VERY

564
00:21:17,560 --> 00:21:19,400
IMPORTANTLY, OPENING THE DOORS

565
00:21:19,400 --> 00:21:21,400
TO ENABLE WHETHER IT'S EXPANSION

566
00:21:21,400 --> 00:21:25,640
IN AGE GROUPS, MATT WILL TALK

567
00:21:25,640 --> 00:21:28,040
ABOUT 16-YEAR-OLD PUBLICATION,

568
00:21:28,040 --> 00:21:30,480
WHICH IS NOW POSSIBLE, INCREASE

569
00:21:30,480 --> 00:21:32,320
IN GEOGRAPHIC AREAS OR NUMBERS

570
00:21:32,320 --> 00:21:36,280
OF KIDS BEING ABLE TO BE

571
00:21:36,280 --> 00:21:39,040
INCLUDED, AND ALSO NOW WE'RE

572
00:21:39,040 --> 00:21:40,680
WELL POSITIONED TO INCREASED

573
00:21:40,680 --> 00:21:43,600
NUMBER OF ADAM SITES, AND NUMBER

574
00:21:43,600 --> 00:21:50,080
OF -- OR CONDITIONS AS WELL.

575
00:21:50,080 --> 00:21:52,720
I'M PROUD OF THE TEAM AND GLAD

576
00:21:52,720 --> 00:21:53,800
TO HAVE AN OPPORTUNITY TO BRAG

577
00:21:53,800 --> 00:21:55,080
ABOUT THEM.

578
00:21:55,080 --> 00:21:58,640
VERY GRATEFUL FOR ALL OF YOUR

579
00:21:58,640 --> 00:22:00,520
INPUT, YOUR PARTNERSHIPS IN THIS

580
00:22:00,520 --> 00:22:02,360
WORK IS REALLY IMPORTANT.

581
00:22:02,360 --> 00:22:05,560
AS WE GO FORWARD WE'RE

582
00:22:05,560 --> 00:22:07,080
INTERESTED TO KNOW WHAT -- HOW

583
00:22:07,080 --> 00:22:10,040
YOU ALL USE THESE DATA AND HOW

584
00:22:10,040 --> 00:22:13,520
THESE DATA ARE HELPFUL TO YOU

585
00:22:13,520 --> 00:22:15,640
FOR ACTION, FOR POLICY, FOR

586
00:22:15,640 --> 00:22:17,280
ADDITIONAL RESEARCH, ET CETERA.

587
00:22:17,280 --> 00:22:20,200
AND I JUST SAW SOMEONE IN THE

588
00:22:20,200 --> 00:22:22,160
CHAT ASK WHAT IS ADAM.

589
00:22:22,160 --> 00:22:24,560
ADAM IS -- MATT WILL PROBABLY

590
00:22:24,560 --> 00:22:28,080
TALK IN MORE DETAIL ABOUT ADAM,

591
00:22:28,080 --> 00:22:31,960
BUT ADAM IS OUR NATION'S AUTISM

592
00:22:31,960 --> 00:22:34,880
SURVEILLANCE NETWORK, CURRENTLY

593
00:22:34,880 --> 00:22:37,840
IT'S IN 11 SITES, AND THROUGH

594
00:22:37,840 --> 00:22:42,640
ADAM FOR WELL OVER A DECADE NOW

595
00:22:42,640 --> 00:22:44,960
WE'VE BEEN COLLECTING DATA ON --

596
00:22:44,960 --> 00:22:49,680
BEGAN WITH KIDS AT AGE 8, BUT TO

597
00:22:49,680 --> 00:22:51,160
BETTER UNDERSTAND PREVALENCE OF

598
00:22:51,160 --> 00:22:53,720
AUTISM BUT ALSO SOME OF THE

599
00:22:53,720 --> 00:22:55,560
CHARACTERS, DEMOGRAPHIC

600
00:22:55,560 --> 00:22:57,160
INFORMATION AS WELL.

601
00:22:57,160 --> 00:22:59,800
SO, WITH THAT, THANK YOU FOR

602
00:22:59,800 --> 00:23:04,320
THAT QUESTION, AND I AM GOING TO

603
00:23:04,320 --> 00:23:07,040
HAND IT OFF TO OUR GREAT LEADERS

604
00:23:07,040 --> 00:23:15,680
AND SCIENTISTS, DR. MATT MAENNER

605
00:23:15,680 --> 00:23:16,480
AND KELLY SHAW.

606
00:23:16,480 --> 00:23:16,800
>>THANK YOU.

607
00:23:16,800 --> 00:23:27,320
I DON'T KNOW IF THE SLIDES ARE

608
00:23:29,560 --> 00:23:31,120
ON THEIR WAY.

609
00:23:31,120 --> 00:23:35,080
THANK YOU FROM THE ADAMED IN

610
00:23:35,080 --> 00:23:36,080
WORK.

611
00:23:36,080 --> 00:23:39,120
HERE WITH DR. KELLY SHAW, IF YOU

612
00:23:39,120 --> 00:23:43,720
GO TO THE NEXT SLIDE.

613
00:23:43,720 --> 00:23:46,240
SO, THERE WERE TWO REPORTS

614
00:23:46,240 --> 00:23:50,640
RELEASED A COUPLE WEEKS AGO.

615
00:23:50,640 --> 00:23:53,360
SO, STILL FRESH FOR US, ONE WAS

616
00:23:53,360 --> 00:23:54,640
ON EARLY IDENTIFICATION OF

617
00:23:54,640 --> 00:23:56,960
AUTISM, AND ONE IS ON PREVALENCE

618
00:23:56,960 --> 00:23:58,720
OF AUTISM FROM THE 11

619
00:23:58,720 --> 00:24:01,360
PARTICIPATING COMMUNITIES IN THE

620
00:24:01,360 --> 00:24:02,880
NETWORK, IN 2020, AND KELLY AND

621
00:24:02,880 --> 00:24:05,520
I WILL REVIEW THE MAIN FINDINGS

622
00:24:05,520 --> 00:24:07,480
OF THESE REPORTS AND HIGHLIGHT A

623
00:24:07,480 --> 00:24:09,120
FEW OTHER NEW THINGS THAT EITHER

624
00:24:09,120 --> 00:24:11,840
JUST CAME OUT FROM THAT ADDM

625
00:24:11,840 --> 00:24:15,680
DATA OR WILL BE COMING OUT ANY

626
00:24:15,680 --> 00:24:17,080
TIME NOW, AS SOON AS THE

627
00:24:17,080 --> 00:24:18,720
JOURNALS PUBLISH THEM.

628
00:24:18,720 --> 00:24:20,080
NEXT SLIDE PLEASE.

629
00:24:20,080 --> 00:24:23,000
SO, IF IT SEEMS LIKE WE WERE

630
00:24:23,000 --> 00:24:26,400
RECENTLY HERE GIVEN AN UPDATE TO

631
00:24:26,400 --> 00:24:30,240
THE IACC, WE DID JUST LAST YEAR

632
00:24:30,240 --> 00:24:32,120
IN JANUARY.

633
00:24:32,120 --> 00:24:33,360
AS KARYL ALLUDED TO, WE'VE

634
00:24:33,360 --> 00:24:34,960
CHANGED UP OUR TIME LINE TO MAKE

635
00:24:34,960 --> 00:24:37,000
THINGS FASTER SO I THOUGHT I

636
00:24:37,000 --> 00:24:40,120
WOULD TAKE A MOMENT JUST THE

637
00:24:40,120 --> 00:24:43,480
TIMING OF THINGS, IS ONE OF MORE

638
00:24:43,480 --> 00:24:44,120
CONFUSING ASPECTS OF

639
00:24:44,120 --> 00:24:47,760
COMMUNICATING OUR WORK.

640
00:24:47,760 --> 00:24:49,040
TO ORIENT EVERYBODY, I THOUGHT I

641
00:24:49,040 --> 00:24:50,280
WOULD TALK ABOUT WHAT OUR NEW

642
00:24:50,280 --> 00:24:53,560
TIME LINE LOOKS LIKE.

643
00:24:53,560 --> 00:24:55,440
HISTORICALLY, THE SURVEILLANCE

644
00:24:55,440 --> 00:24:58,360
DATA WOULD TYPICALLY COME OUT IN

645
00:24:58,360 --> 00:24:59,560
THE FOURTH YEAR AFTER THE

646
00:24:59,560 --> 00:25:00,760
SURVEILLANCE YEAR, SO THERE

647
00:25:00,760 --> 00:25:02,720
WOULD BE LIKE THREE YEARS AND

648
00:25:02,720 --> 00:25:04,400
CHANGE OF DATA COLLECTION, SO

649
00:25:04,400 --> 00:25:08,960
THE 2014 DATA CAME OUT IN EARLY

650
00:25:08,960 --> 00:25:12,400
2018, 2016 DATA CAME OUT IN

651
00:25:12,400 --> 00:25:15,640
SPRING OF 2020, WHICH I THINK

652
00:25:15,640 --> 00:25:17,960
SOME PEOPLE MAY NOT HAVE --

653
00:25:17,960 --> 00:25:18,840
MISSED, BECAUSE THERE WERE OTHER

654
00:25:18,840 --> 00:25:20,440
THINGS HAPPENING THAT MONTH.

655
00:25:20,440 --> 00:25:23,000
BUT THEN WE IMPLEMENTED SOME NEW

656
00:25:23,000 --> 00:25:25,520
METHODS TO TRY TO MAKE THINGS

657
00:25:25,520 --> 00:25:28,320
MORE EFFICIENT AND FASTER, AFTER

658
00:25:28,320 --> 00:25:28,520
THAT.

659
00:25:28,520 --> 00:25:29,200
SO FOR THE 2018 SURVEILLANCE

660
00:25:29,200 --> 00:25:30,720
YEAR WE WERE ABLE TO SPEED

661
00:25:30,720 --> 00:25:33,440
THINGS UP A FEW MONTHS AND

662
00:25:33,440 --> 00:25:36,240
PUBLISHED THE REPORTS AT THE END

663
00:25:36,240 --> 00:25:40,160
OF 2021, AND THEN THIS YEAR WE

664
00:25:40,160 --> 00:25:42,920
WERE PUBLISHING DATA ON 2020 IN

665
00:25:42,920 --> 00:25:44,800
MARCH OF 2023, WHEREAS UNDER THE

666
00:25:44,800 --> 00:25:47,520
OLD TIMELINE IT WOULD HAVE BEEN

667
00:25:47,520 --> 00:25:50,600
BEEN MARCH OF 2024, SO WE WOULD

668
00:25:50,600 --> 00:25:51,760
HAVE POTENTIALLY BEEN HERE A

669
00:25:51,760 --> 00:25:53,080
YEAR FROM TODAY.

670
00:25:53,080 --> 00:25:55,840
THESE CHANGES ALSO AFFORDED US

671
00:25:55,840 --> 00:25:56,680
OTHER EFFICIENCIES AND ABILITY

672
00:25:56,680 --> 00:25:59,880
TO DO MORE, AND TO COVER MORE

673
00:25:59,880 --> 00:26:01,000
GROUND.

674
00:26:01,000 --> 00:26:03,080
THERE'S CERTAINLY NO SHORTAGE OF

675
00:26:03,080 --> 00:26:08,240
IMPORTANT DATA GAPS WE COULD BE

676
00:26:08,240 --> 00:26:10,720
ADDRESSING, AND SO BY

677
00:26:10,720 --> 00:26:11,320
IMPLEMENTING THESE MORE

678
00:26:11,320 --> 00:26:13,240
EFFICIENT METHODS WE WERE ABLE

679
00:26:13,240 --> 00:26:15,880
TO MAINTAIN THE BASIC INDICATORS

680
00:26:15,880 --> 00:26:17,760
THE NETWORK PUTS OUT, SIMILARLY

681
00:26:17,760 --> 00:26:20,160
WE WERE ALSO ABLE TO EXPAND OUR

682
00:26:20,160 --> 00:26:23,000
TRACKING OF EARLY AUTISM

683
00:26:23,000 --> 00:26:24,320
DETECTION IN 4-YEAR-OLDS TO ALL

684
00:26:24,320 --> 00:26:26,760
SITES RATHER THAN JUST A SUBSET

685
00:26:26,760 --> 00:26:31,680
OF SOME OF THE SITES, AND AS

686
00:26:31,680 --> 00:26:34,880
KARYL MENTIONED WE BEGAN A NEW

687
00:26:34,880 --> 00:26:36,200
ACTIVITY FOLLOWING UP THE

688
00:26:36,200 --> 00:26:39,320
ADOLESCENTS AT AGE 16 TO LEARN

689
00:26:39,320 --> 00:26:41,160
MORE ABOUT THE NEEDS OF

690
00:26:41,160 --> 00:26:43,360
ADOLESCENTS ON THE SPECTRUM AND

691
00:26:43,360 --> 00:26:45,680
TO THINK ABOUT TRANSITION

692
00:26:45,680 --> 00:26:46,760
PLANNING AND POTENTIAL, YOU

693
00:26:46,760 --> 00:26:50,800
KNOW, WHAT MIGHT BE IN STORE FOR

694
00:26:50,800 --> 00:26:53,880
THEM AFTER HIGH SCHOOL.

695
00:26:53,880 --> 00:26:58,680
NEXT SLIDE PLEASE.

696
00:26:58,680 --> 00:27:01,080
SO, ADDM NETWORK IS A

697
00:27:01,080 --> 00:27:02,000
POPULATION-BASED SURVEILLANCE

698
00:27:02,000 --> 00:27:04,600
SYSTEM THAT MONITORS AUTISM

699
00:27:04,600 --> 00:27:07,040
AMONG CHILDREN LIVING IN

700
00:27:07,040 --> 00:27:08,480
MULTIPLE GEOGRAPHICALLY DEFINED

701
00:27:08,480 --> 00:27:09,440
AREAS.

702
00:27:09,440 --> 00:27:11,280
HERE ARE THE COUNTIES INCLUDED

703
00:27:11,280 --> 00:27:14,120
IN THE MOST RECENT REPORTS,

704
00:27:14,120 --> 00:27:16,440
SHOWN IN GREEN.

705
00:27:16,440 --> 00:27:19,320
THE ADDM NETWORK REPORTED

706
00:27:19,320 --> 00:27:21,680
PREVALENCE AMONG 8-YEAR-OLDS

707
00:27:21,680 --> 00:27:24,120
EVERY TWO YEARS SINCE 2000, AND

708
00:27:24,120 --> 00:27:25,440
THIS ISN'T A NATIONALLY

709
00:27:25,440 --> 00:27:27,480
REPRESENTATIVE SAMPLE BUT IT

710
00:27:27,480 --> 00:27:29,240
DOES COVER A LARGE POPULATION

711
00:27:29,240 --> 00:27:31,760
AND IT HAS BOTH GEOGRAPHIC AND

712
00:27:31,760 --> 00:27:35,160
DEMOGRAPHIC DIVERSITY IN THE

713
00:27:35,160 --> 00:27:37,120
COMMUNITIES THAT ARE INCLUDED.

714
00:27:37,120 --> 00:27:39,760
NEXT SLIDE PLEASE.

715
00:27:39,760 --> 00:27:42,600
SO, THE WAY AUTISM WAS

716
00:27:42,600 --> 00:27:45,000
ASCERTAINED, WHICH IS THE SAME

717
00:27:45,000 --> 00:27:48,520
AS THE LAST REPORT AS WELL, IS

718
00:27:48,520 --> 00:27:50,640
THAT ALL CHILDREN WERE INCLUDED

719
00:27:50,640 --> 00:27:52,680
IF THEY WERE THE RIGHT AGE AND

720
00:27:52,680 --> 00:27:54,640
LIVED IN THE SURVEILLANCE AREA

721
00:27:54,640 --> 00:27:56,600
DURING THE SURVEILLANCE YEAR, SO

722
00:27:56,600 --> 00:27:58,680
AT ANY TIME DURING 2020, AND

723
00:27:58,680 --> 00:28:00,000
THEY HAD DOCUMENTATION OF ANY

724
00:28:00,000 --> 00:28:02,000
ONE OF THE THREE OF THESE

725
00:28:02,000 --> 00:28:02,920
THINGS.

726
00:28:02,920 --> 00:28:05,800
THEY COULD HAVE A WRITTEN AUTISM

727
00:28:05,800 --> 00:28:08,240
DIAGNOSIS FROM A QUALIFIED

728
00:28:08,240 --> 00:28:09,720
PROFESSIONAL SOMEWHERE IN THE

729
00:28:09,720 --> 00:28:13,000
CHART; THEY COULD HAVE SPECIAL

730
00:28:13,000 --> 00:28:16,200
EDUCATION CLASSIFICATION OF

731
00:28:16,200 --> 00:28:19,560
AUTISM FROM A SCHOOL; OR AN

732
00:28:19,560 --> 00:28:21,120
AUTISM ICD OR BILLING CODE THAT

733
00:28:21,120 --> 00:28:23,720
COULD COME FROM A VARIETY --

734
00:28:23,720 --> 00:28:26,800
FROM HEALTH CARE PROVIDERS,

735
00:28:26,800 --> 00:28:27,480
DIFFERENT ADMINISTRATIVE SERVICE

736
00:28:27,480 --> 00:28:29,080
PROVIDERS, BUT IF THEY HAD ANY

737
00:28:29,080 --> 00:28:33,440
ONE OF THOSE THREE THINGS THEY

738
00:28:33,440 --> 00:28:36,640
WOULD BE COUNTED IN THE NUMBER

739
00:28:36,640 --> 00:28:38,960
OF CHILDREN WITH ASD.

740
00:28:38,960 --> 00:28:40,800
NEXT SLIDE PLEASE.

741
00:28:40,800 --> 00:28:42,520
THE OVERALL RESULT AVERAGING

742
00:28:42,520 --> 00:28:48,560
ACROSS ALL 11 SITES WAS 1 IN 36

743
00:28:48,560 --> 00:28:50,800
CHILDREN WERE IDENTIFIED AS

744
00:28:50,800 --> 00:28:54,480
HAVING AUTISM IN 2020 IN THE

745
00:28:54,480 --> 00:28:56,880
ADDM SITES, THAT'S 2.8%, AND I

746
00:28:56,880 --> 00:28:59,080
THINK THE NEXT SLIDE COMPARES IT

747
00:28:59,080 --> 00:29:01,760
TO THE PREVIOUS REPORT WHICH

748
00:29:01,760 --> 00:29:04,280
INCLUDED THE SAME 11 COMMUNITIES

749
00:29:04,280 --> 00:29:09,240
IN 2018, 1 IN 44 CHILDREN, OR

750
00:29:09,240 --> 00:29:09,680
2.3%.

751
00:29:09,680 --> 00:29:10,800
NEXT SLIDE PLEASE.

752
00:29:10,800 --> 00:29:13,080
SO THIS BAR CHART, THIS ISN'T

753
00:29:13,080 --> 00:29:15,920
SHOWING THE NUMBERS OVER TIME.

754
00:29:15,920 --> 00:29:18,120
THIS IS SHOWING THE 11 SITES IN

755
00:29:18,120 --> 00:29:20,200
THE MOST RECENT YEAR FOR

756
00:29:20,200 --> 00:29:21,920
8-YEAR-OLD CHILDREN, SO THE

757
00:29:21,920 --> 00:29:24,800
HEIGHT OF THE BARS REPRESENT THE

758
00:29:24,800 --> 00:29:26,680
OVERALL AUTISM PREVALENCE, BUT

759
00:29:26,680 --> 00:29:28,240
THEN THE DIFFERENT COLORS

760
00:29:28,240 --> 00:29:30,360
REPRESENT THE KIND OF THE LEVEL

761
00:29:30,360 --> 00:29:31,440
OF INFORMATION THAT WE HAVE, HOW

762
00:29:31,440 --> 00:29:34,320
WE KNOW THEY WERE IDENTIFIED, SO

763
00:29:34,320 --> 00:29:37,480
THE GREEN BARS ARE INDICATING

764
00:29:37,480 --> 00:29:38,400
CHILDREN WITH A WRITTEN

765
00:29:38,400 --> 00:29:40,000
STATEMENT INDICATING THEY WERE

766
00:29:40,000 --> 00:29:41,760
DIAGNOSED WITH AUTISM SOMEWHERE

767
00:29:41,760 --> 00:29:44,600
IN THEIR RECORDS.

768
00:29:44,600 --> 00:29:47,000
THE BLUE REFLECTS CHILDREN THAT

769
00:29:47,000 --> 00:29:48,320
DIDN'T HAVE THAT WRITTEN

770
00:29:48,320 --> 00:29:51,240
STATEMENT BUT WERE CLASSIFIED AT

771
00:29:51,240 --> 00:29:55,040
SOME POINT AS HAVING RECEIVING

772
00:29:55,040 --> 00:29:56,640
AUTISM SERVICES IN SPECIAL

773
00:29:56,640 --> 00:29:57,000
EDUCATION.

774
00:29:57,000 --> 00:29:57,920
AND PURPLE ARE CHILDREN THAT

775
00:29:57,920 --> 00:30:00,560
DIDN'T HAVE THE WRITTEN

776
00:30:00,560 --> 00:30:02,120
DIAGNOSIS OR SPECIAL EDUCATION

777
00:30:02,120 --> 00:30:04,640
CLASSIFICATION, BUT DID HAVE AN

778
00:30:04,640 --> 00:30:06,040
AUTISM ICD CODE ASSOCIATED WITH

779
00:30:06,040 --> 00:30:07,360
THEIR RECORD.

780
00:30:07,360 --> 00:30:11,600
AND SO ABOUT 3/4 OF THE CHILDREN

781
00:30:11,600 --> 00:30:14,240
HAD A WRITTEN DIAGNOSTIC

782
00:30:14,240 --> 00:30:15,160
STATEMENT, INDICATING AUTISM,

783
00:30:15,160 --> 00:30:16,240
SOMEWHERE IN THEIR RECORD, AND

784
00:30:16,240 --> 00:30:20,840
YOU CAN SEE THERE WAS STILL

785
00:30:20,840 --> 00:30:22,240
PRETTY -- SOME VARIABILITY

786
00:30:22,240 --> 00:30:24,760
BETWEEN THE LOW AND HIGH FROM

787
00:30:24,760 --> 00:30:29,200
MARYLAND AT ABOUT 2.3%, TO

788
00:30:29,200 --> 00:30:33,320
CALIFORNIA AT 4.5 I WANT TO SAY,

789
00:30:33,320 --> 00:30:36,720
PERCENT, AND BUT THE OTHER SITES

790
00:30:36,720 --> 00:30:41,280
WERE REALLY ALL BETWEEN THE 2.3

791
00:30:41,280 --> 00:30:44,000
AND 3%, WHICH IS POTENTIALLY A

792
00:30:44,000 --> 00:30:46,640
BIT NARROWER THAN PAST YEARS.

793
00:30:46,640 --> 00:30:47,320
NEXT SLIDE.

794
00:30:47,320 --> 00:30:53,040
SO IN ADDITION TO REPORTING THE

795
00:30:53,040 --> 00:30:55,840
PREVALENCE BY THE STATE, WE ALSO

796
00:30:55,840 --> 00:30:57,360
REPORT BY DIFFERENT DEMOGRAPHIC

797
00:30:57,360 --> 00:30:59,800
GROUPS, AND ONE OF THE

798
00:30:59,800 --> 00:31:02,200
INTERESTING FINDINGS FROM THIS

799
00:31:02,200 --> 00:31:04,280
MOST RECENT REPORT IS THIS

800
00:31:04,280 --> 00:31:07,120
CONTINUATION OF RACIAL AND

801
00:31:07,120 --> 00:31:08,000
ETHNIC DIFFERENCES AND

802
00:31:08,000 --> 00:31:09,240
PREVALENCE, ESPECIALLY IN

803
00:31:09,240 --> 00:31:13,560
CONTEXT OF WHAT WAS OBSERVED IN

804
00:31:13,560 --> 00:31:16,560
ADDM REPORTS PREVIOUSLY.

805
00:31:16,560 --> 00:31:18,520
THIS CHOSE HISTORICAL DATA FROM

806
00:31:18,520 --> 00:31:23,040
PREVIOUSLY PUBLISHED ADDM

807
00:31:23,040 --> 00:31:24,200
FINDINGS STARTING WITH 2002

808
00:31:24,200 --> 00:31:25,240
SURVEILLANCE, WHAT WAS PUBLISHED

809
00:31:25,240 --> 00:31:30,240
IN THE REPORTS, AND SO THE

810
00:31:30,240 --> 00:31:30,840
DIFFERENT COLOR DOTS REPRESENT

811
00:31:30,840 --> 00:31:32,640
DIFFERENT RACIAL AND ETHNIC

812
00:31:32,640 --> 00:31:33,080
GROUPS.

813
00:31:33,080 --> 00:31:36,680
FIRST REPORT, JUST ONLY REPORTED

814
00:31:36,680 --> 00:31:38,480
RACE PREVALENCE FOR NON-HISPANIC

815
00:31:38,480 --> 00:31:39,520
WHITE AND NON-HISPANIC BLACK

816
00:31:39,520 --> 00:31:41,720
CHILDREN, AND OTHER GROUPS WERE

817
00:31:41,720 --> 00:31:44,040
ADDED OVER TIME BUT YOU CAN SEE

818
00:31:44,040 --> 00:31:46,880
THAT FOR THE FIRST YEARS OF THE

819
00:31:46,880 --> 00:31:49,320
ADDM NETWORK THERE WAS A

820
00:31:49,320 --> 00:31:51,720
CONSISTENT DIFFERENCE IN THE

821
00:31:51,720 --> 00:31:54,800
PREVALENCE WAS HIGHER AMONG

822
00:31:54,800 --> 00:31:58,760
WHITE CHILDREN THAN AMONG BLACK,

823
00:31:58,760 --> 00:32:02,440
HISPANIC, OR ASIAN/PACIFIC

824
00:32:02,440 --> 00:32:04,760
ISLANDER CHILDREN, PERSISTING

825
00:32:04,760 --> 00:32:07,240
THROUGH 2014 OVERALL, AND NEXT

826
00:32:07,240 --> 00:32:10,080
SLIDE SHOWS THE NEXT COUPLE

827
00:32:10,080 --> 00:32:13,160
YEARS, THE GAP STARTED TO NARROW

828
00:32:13,160 --> 00:32:19,640
A LITTLE BIT, AND IN 2016 THERE

829
00:32:19,640 --> 00:32:21,280
WERE NO OVERALL DIFFERENCES

830
00:32:21,280 --> 00:32:23,800
BETWEEN WHITE AND BLACK

831
00:32:23,800 --> 00:32:26,760
CHILDREN, AND THEN IN 2018 THERE

832
00:32:26,760 --> 00:32:28,280
WERE OVERALL NO DIFFERENCES

833
00:32:28,280 --> 00:32:30,400
BETWEEN ANY OF THE RACIAL GROUPS

834
00:32:30,400 --> 00:32:33,440
BUT STILL WITHIN SOME

835
00:32:33,440 --> 00:32:35,640
COMMUNITIES LIKE THERE WERE SOME

836
00:32:35,640 --> 00:32:36,640
INSTANCES I THINK PARTICULARLY

837
00:32:36,640 --> 00:32:37,640
WITH HISPANIC CHILDREN BEING

838
00:32:37,640 --> 00:32:40,560
LESS LIKELY TO BE IDENTIFIED.

839
00:32:40,560 --> 00:32:43,640
BUT THEN THE NEXT SLIDE, THIS

840
00:32:43,640 --> 00:32:46,040
YEAR, THAT PATTERN HAS CONTINUED

841
00:32:46,040 --> 00:32:48,680
WHERE OVER TIME ALL OF THE

842
00:32:48,680 --> 00:32:51,320
GROUPS ARE INCREASING BUT THE

843
00:32:51,320 --> 00:32:53,720
PREVALENCE AMONG WHITE CHILDREN

844
00:32:53,720 --> 00:32:54,680
WAS INCREASING MORE SLOWLY

845
00:32:54,680 --> 00:32:56,760
COMPARED TO THE OTHER GROUPS.

846
00:32:56,760 --> 00:32:58,600
AND SO THIS PATTERN HAS

847
00:32:58,600 --> 00:33:00,400
CONTINUED WHERE THE GAP HAS

848
00:33:00,400 --> 00:33:03,120
CLOSED THAT CAUGHT UP AND NOW

849
00:33:03,120 --> 00:33:07,440
THE DIRECTION OF THE DIFFERENCES

850
00:33:07,440 --> 00:33:08,800
HAS REVERSED.

851
00:33:08,800 --> 00:33:11,240
SO, ONE THOUGHT IS THIS COULD

852
00:33:11,240 --> 00:33:13,920
INDICATE FOR EQUITABLE DETECTION

853
00:33:13,920 --> 00:33:15,040
OF AUTISM AMONG ALL CHILDREN,

854
00:33:15,040 --> 00:33:17,680
BUT IT'S ALSO TOO EARLY TO SAY

855
00:33:17,680 --> 00:33:20,120
EXACTLY WHAT THIS MEANS JUST

856
00:33:20,120 --> 00:33:23,280
BASED ON THIS ONE YEAR OF DATA

857
00:33:23,280 --> 00:33:24,240
SHOWING THIS NEW PATTERN.

858
00:33:24,240 --> 00:33:26,680
AND I THINK WITH THE NEXT SLIDE,

859
00:33:26,680 --> 00:33:28,960
I THINK WE'LL TURN IT OVER TO

860
00:33:28,960 --> 00:33:37,640
DR. SHAW TO TALK ABOUT THE OTHER

861
00:33:37,640 --> 00:33:37,880
REPORT.

862
00:33:37,880 --> 00:33:40,640
>>PERHAPS IT WAS
DISCUSSED ON A

863
00:33:40,640 --> 00:33:42,440
PRIOR IACC MEETING THE NUMBER

864
00:33:42,440 --> 00:33:44,280
HAS BEEN MOVING AWAY FROM JUST

865
00:33:44,280 --> 00:33:47,120
REPORTING MEDIAN AGE OF

866
00:33:47,120 --> 00:33:50,200
DIAGNOSIS BECAUSE AS A METRIC,

867
00:33:50,200 --> 00:33:52,360
OVER TIME, IT HAD LIKE A LOT OF

868
00:33:52,360 --> 00:33:53,120
LIMITATIONS TO IT.

869
00:33:53,120 --> 00:33:54,920
AND SO WE PUBLISHED AN ANALYSIS

870
00:33:54,920 --> 00:33:57,640
THAT KIND OF WENT INTO THAT IN

871
00:33:57,640 --> 00:33:59,040
EXCRUCIATING DETAIL I WOULD SAY,

872
00:33:59,040 --> 00:34:04,080
BUT WHAT WE HAVE STARTED USING

873
00:34:04,080 --> 00:34:07,400
IS CUMULATIVE INCIDENCE OF

874
00:34:07,400 --> 00:34:08,480
AUTISM SPECTRUM DISORDER.

875
00:34:08,480 --> 00:34:15,680
WHAT THIS MEASURE DOES IS

876
00:34:15,680 --> 00:34:16,320
INCORPORATION INFORMATION ABOUT

877
00:34:16,320 --> 00:34:18,760
PREVALENCE AS WELL.

878
00:34:18,760 --> 00:34:20,080
THIS IS SHOWING ON THE X-AXIS

879
00:34:20,080 --> 00:34:23,560
AGE IN MONTHS, AND WE'RE

880
00:34:23,560 --> 00:34:27,520
GRAPHING CUMULATIVE INCIDENCE OF

881
00:34:27,520 --> 00:34:29,120
DIAGNOSIS OR SPECIAL EDUCATION,

882
00:34:29,120 --> 00:34:29,840
REFERRED TO AS IDENTIFICATION

883
00:34:29,840 --> 00:34:31,120
OVER AGE.

884
00:34:31,120 --> 00:34:35,280
AND WHAT WE'RE ABLE TO DO IS TO

885
00:34:35,280 --> 00:34:37,440
COMPARE THE CHILDREN WHO ARE 4

886
00:34:37,440 --> 00:34:40,840
IN 2020 TO CHILDREN WHO WERE 8

887
00:34:40,840 --> 00:34:43,360
IN 2020, AND WE CAN KIND OF SEE

888
00:34:43,360 --> 00:34:46,640
THE TRAJECTORY OF HOW THEY ARE

889
00:34:46,640 --> 00:34:47,520
ACCUMULATING THESE

890
00:34:47,520 --> 00:34:49,920
IDENTIFICATIONS OF ASD OVER

891
00:34:49,920 --> 00:34:50,160
TIME.

892
00:34:50,160 --> 00:34:53,000
AND WHAT WE'VE SEEN SINCE WE'VE

893
00:34:53,000 --> 00:34:55,280
STARTED USING THIS MEASURE IS

894
00:34:55,280 --> 00:34:58,160
THAT EACH YEAR THE YOUNGER GROUP

895
00:34:58,160 --> 00:35:00,440
HAS A HIGHER CUMULATIVE

896
00:35:00,440 --> 00:35:01,440
INCIDENCE OF IDENTIFICATION BY

897
00:35:01,440 --> 00:35:04,080
48 MONTHS OF AGE.

898
00:35:04,080 --> 00:35:06,440
SO, THERE ARE INCREASES IN

899
00:35:06,440 --> 00:35:08,760
IDENTIFICATION OVER TIME THAT WE

900
00:35:08,760 --> 00:35:10,520
CAN SEE WITH THIS APPROACH.

901
00:35:10,520 --> 00:35:18,600
AND THEN THE NEXT SLIDE.

902
00:35:18,600 --> 00:35:22,200
FIRST A BLANK GRAPH, EXPLAIN IT

903
00:35:22,200 --> 00:35:23,520
BEFORE FLASHING STUFF UP THERE,

904
00:35:23,520 --> 00:35:27,000
WHAT WE WERE INTERESTED IN THIS

905
00:35:27,000 --> 00:35:27,760
YEAR, WELL, FOR THE 2020

906
00:35:27,760 --> 00:35:29,760
SURVEILLANCE YEAR OF COURSE WAS

907
00:35:29,760 --> 00:35:36,280
WHETHER WE COULD LOOK AT THE

908
00:35:36,280 --> 00:35:38,600
IMPACTS OF COVID, AND SO BEING

909
00:35:38,600 --> 00:35:42,360
ABLE TO BREAK APART INCIDENCE BY

910
00:35:42,360 --> 00:35:44,760
CALENDAR MONTH, LOOKING OVER

911
00:35:44,760 --> 00:35:46,080
TIME HELPED US GET AT THAT

912
00:35:46,080 --> 00:35:47,720
QUESTION OF WHAT HAPPENED TO

913
00:35:47,720 --> 00:35:48,920
EARLY IDENTIFICATION OF AUTISM.

914
00:35:48,920 --> 00:35:52,320
SO, WHAT WE DID WAS TOOK AGAIN

915
00:35:52,320 --> 00:35:54,400
THIS COMPARISON OF THE

916
00:35:54,400 --> 00:35:56,800
4-YEAR-OLDS IN 2020 TO

917
00:35:56,800 --> 00:36:03,360
8-YEAR-OLDS IN 2020, AND WE

918
00:36:03,360 --> 00:36:05,520
COMPARED THE FIRST FOUR YEARS OF

919
00:36:05,520 --> 00:36:09,160
LIFE TO SEE WHAT WAS GOING ON

920
00:36:09,160 --> 00:36:10,120
WHEN 8-YEAR-OLDS WERE IN THE

921
00:36:10,120 --> 00:36:11,920
SAME WINDOW TO THE 4-YEAR-OLDS.

922
00:36:11,920 --> 00:36:12,560
NEXT SLIDE.

923
00:36:12,560 --> 00:36:16,400
WHAT WE WERE ABLE TO SEE, BLUE

924
00:36:16,400 --> 00:36:16,960
BARS INDICATE MORE

925
00:36:16,960 --> 00:36:18,920
IDENTIFICATION, WE ALSO DID THIS

926
00:36:18,920 --> 00:36:22,960
WITH EVALUATIONS AND IT SHOWED

927
00:36:22,960 --> 00:36:24,760
VERY SIMILAR PATTERNS PRIOR TO

928
00:36:24,760 --> 00:36:29,760
MARCH OF 2020 FOR THE

929
00:36:29,760 --> 00:36:30,480
4-YEAR-OLDS, THERE WERE

930
00:36:30,480 --> 00:36:35,120
INCREASES, MUCH MORE AUTISM

931
00:36:35,120 --> 00:36:38,200
DETECTION GOING ON COMPARED TO

932
00:36:38,200 --> 00:36:38,960
WHAT 8-YEAR-OLDS EXPERIENCED

933
00:36:38,960 --> 00:36:39,920
FOUR YEARS PREVIOUSLY.

934
00:36:39,920 --> 00:36:43,000
ON THE NEXT SLIDE HERE WE CAN

935
00:36:43,000 --> 00:36:44,520
SEE WHERE THAT PROGRESS WAS

936
00:36:44,520 --> 00:36:45,760
REALLY WIPED OUT BY THE

937
00:36:45,760 --> 00:36:48,040
PANDEMIC, SO IT KIND OF JUST

938
00:36:48,040 --> 00:36:55,280
WENT OFF A CLIFF IN MARCH OF

939
00:36:55,280 --> 00:36:56,400
2020 FOR THE 4-YEAR-OLDS, AND

940
00:36:56,400 --> 00:36:58,320
THEY BEGAN TO SEE FEWER

941
00:36:58,320 --> 00:37:00,080
IDENTIFICATIONS AND EVALUATIONS

942
00:37:00,080 --> 00:37:02,240
COMPARED TO WHAT THE 8-YEAR-OLDS

943
00:37:02,240 --> 00:37:11,120
HAD SEEN FOUR YEARS PRIOR.

944
00:37:11,120 --> 00:37:13,320
, A STRIKING FINDING BECAUSE OF

945
00:37:13,320 --> 00:37:13,720
THE IDENTIFICATION.

946
00:37:13,720 --> 00:37:21,320
NEXT SLIDE. 

947
00:37:21,320 --> 00:37:22,720
THIS SLIDE SUMMARIZES THE

948
00:37:22,720 --> 00:37:23,600
DIFFERENT -- DATA RELEASE IS NOT

949
00:37:23,600 --> 00:37:25,160
JUST THE REPORT.

950
00:37:25,160 --> 00:37:28,400
IT'S I THINK -- PEOPLE OFTEN

951
00:37:28,400 --> 00:37:29,760
PREFER MAYBE NOT READING REPORTS

952
00:37:29,760 --> 00:37:32,920
BUT HAVING SOME OF THE MORE

953
00:37:32,920 --> 00:37:34,560
FRIENDLY COMMUNICATIONS PRODUCTS

954
00:37:34,560 --> 00:37:35,760
THAT WE OFFER, WE OF COURSE

955
00:37:35,760 --> 00:37:38,160
UPDATE THE WEBSITE WITH THE

956
00:37:38,160 --> 00:37:39,680
NEWEST DATA, THE COMMUNITY

957
00:37:39,680 --> 00:37:42,680
REPORT FOR AUTISM IS A PRODUCT

958
00:37:42,680 --> 00:37:43,720
THAT WE REALLY APPRECIATE BEING

959
00:37:43,720 --> 00:37:47,720
ABLE TO PROVIDE FOR COMMUNITIES

960
00:37:47,720 --> 00:37:49,880
BECAUSE IT SUMMARIZES FINDSS FOR

961
00:37:49,880 --> 00:37:51,840
FOLKS BUT ALSO EACH STATES THAT

962
00:37:51,840 --> 00:37:53,160
ITS OWN PAGE WHERE THEY PICK

963
00:37:53,160 --> 00:38:04,000
WHAT THEY THEY THINK EY THINK YT

964
00:38:15,160 --> 00:38:19,360
IMPORTANT. 

965
00:38:19,360 --> 00:38:22,400
THOSE HAVE MAXIMUM

966
00:38:22,400 --> 00:38:22,720
ACCESSIBILITY.

967
00:38:22,720 --> 00:38:23,640
MANY DATA VISUALIZATIONS YOU'VE

968
00:38:23,640 --> 00:38:24,920
SEEN TODAY ARE AVAILABLE FOR

969
00:38:24,920 --> 00:38:27,440
RESEARCHERS WHO WANT TO TALK

970
00:38:27,440 --> 00:38:31,040
ABOUT ADDM DATA.

971
00:38:31,040 --> 00:38:36,280
WE TRY TO PROVIDE DATA

972
00:38:36,280 --> 00:38:37,160
VISUALIZATION, ALLOWING FOLKS TO

973
00:38:37,160 --> 00:38:40,800
LOOK AT DATA FROM FOUR FEDERAL

974
00:38:40,800 --> 00:38:42,520
DATA SOURCES, AND IT INCLUDES,

975
00:38:42,520 --> 00:38:43,520
YOU KNOW, ALL COMMUNITIES, SO

976
00:38:43,520 --> 00:38:44,960
YOU CAN SEE WHAT DATA ARE

977
00:38:44,960 --> 00:38:47,040
AVAILABLE FOR THEIR COMMUNITIES.

978
00:38:47,040 --> 00:38:50,280
AND THEN, MATT, DID YOU WANT TO

979
00:38:50,280 --> 00:38:51,280
BRIEFLY MENTION --

980
00:38:51,280 --> 00:38:56,320
>>YES, ONE OF THE THINGS
WE DID

981
00:38:56,320 --> 00:39:01,920
THIS YEAR WAS THE CDC'S

982
00:39:01,920 --> 00:39:04,080
PUBLICATION HAS BEEN ENCOURAGING

983
00:39:04,080 --> 00:39:08,080
PAIRED COMMENTARY WHERE WE CAN

984
00:39:08,080 --> 00:39:13,240
SHARE THE DRAFTS TO HAVE A

985
00:39:13,240 --> 00:39:14,600
COMMENTARY COME OUT, AND RATHER

986
00:39:14,600 --> 00:39:16,160
THAN GOING LIKE AN ACADEMIC

987
00:39:16,160 --> 00:39:18,640
ROUTE WE THOUGHT THIS WAS LIKE A

988
00:39:18,640 --> 00:39:20,600
GREAT OPPORTUNITY TO, YOU KNOW,

989
00:39:20,600 --> 00:39:21,840
INCLUDE A COMMUNITY PERSPECTIVE

990
00:39:21,840 --> 00:39:23,320
ON WHAT THESE DATA MEAN, POINT

991
00:39:23,320 --> 00:39:26,960
OUT MAYBE WHAT NEEDS TO BE DONE,

992
00:39:26,960 --> 00:39:27,720
AND REALLY HAVE THAT

993
00:39:27,720 --> 00:39:29,280
PARTICIPATION LIKE RIGHT FROM

994
00:39:29,280 --> 00:39:31,480
THE INSTANT THAT IT'S PUBLISHED

995
00:39:31,480 --> 00:39:38,760
SO WE WERE PLEASED TO HAVE THIS

996
00:39:38,760 --> 00:39:40,960
ACCOMPANYING COMMENTARY IN STAT

997
00:39:40,960 --> 00:39:42,400
NEWS, TWO MEMBERS THAT THIS

998
00:39:42,400 --> 00:39:43,520
COMMUNITY IS FAMILIAR WITH.

999
00:39:43,520 --> 00:39:46,000
IT WAS GREAT TO WORK WITH THEM.

1000
00:39:46,000 --> 00:39:47,760
AND SO WE'RE JUST REALLY GLAD TO

1001
00:39:47,760 --> 00:39:51,240
BE ABLE TO HAVE THAT RIGHT AT

1002
00:39:51,240 --> 00:39:51,880
THE BEGINNING.

1003
00:39:51,880 --> 00:39:53,880
THESE DATA ARE MEANT TO BE USED

1004
00:39:53,880 --> 00:39:57,360
AND TO HELP UNDERSTAND WHAT'S

1005
00:39:57,360 --> 00:39:59,120
HAPPENING AND TO IDEALLY HELP

1006
00:39:59,120 --> 00:40:01,520
INFORM GOOD DECISIONS ABOUT WHAT

1007
00:40:01,520 --> 00:40:03,840
NEEDS TO BE DONE AND SO WE'RE

1008
00:40:03,840 --> 00:40:06,160
PLEASED FOR THEIR COLLABORATION

1009
00:40:06,160 --> 00:40:06,440
ON THIS.

1010
00:40:06,440 --> 00:40:09,400
>>OKAY. 

1011
00:40:09,400 --> 00:40:10,360
AND THEN NEXT SLIDE.

1012
00:40:10,360 --> 00:40:14,400
SO WE OF COURSE HAD THE DATA

1013
00:40:14,400 --> 00:40:15,840
RELEASE, WHICH WAS A LOT OF

1014
00:40:15,840 --> 00:40:17,040
THINGS, BUT THAT WASN'T EVEN ALL

1015
00:40:17,040 --> 00:40:19,160
THAT WAS GOING ON EARLY IN THIS

1016
00:40:19,160 --> 00:40:19,920
YEAR.

1017
00:40:19,920 --> 00:40:23,640
WE HAD A FEW PAPERS SUDDENLY,

1018
00:40:23,640 --> 00:40:27,360
YOU KNOW, LIKE COME THROUGH THE

1019
00:40:27,360 --> 00:40:28,560
PUBLICATION PIPELINE, SOME

1020
00:40:28,560 --> 00:40:29,440
UNEXPECTEDLY, BUT IT'S ALWAYS,

1021
00:40:29,440 --> 00:40:33,120
YOU KNOW, NICE FOR THAT TO WORK

1022
00:40:33,120 --> 00:40:34,200
OUT.

1023
00:40:34,200 --> 00:40:35,160
SO, NEXT SLIDE.

1024
00:40:35,160 --> 00:40:37,960
FIRST, I'M GOING TO TALK ABOUT

1025
00:40:37,960 --> 00:40:39,520
THE FIRST EVER ADOLESCENT DATA

1026
00:40:39,520 --> 00:40:43,760
THAT CDC WAS ABLE TO PUBLISH. 

1027
00:40:43,760 --> 00:40:46,200
SO AS MATT MENTIONED FIVE SITES

1028
00:40:46,200 --> 00:40:49,480
FOLLOWED UP ON CHILDREN WHO

1029
00:40:49,480 --> 00:40:52,640
INITIALLY CAME TO ATTENTION WITH

1030
00:40:52,640 --> 00:40:54,280
SYMPTOMS OR INDICATIONS BY AGE

1031
00:40:54,280 --> 00:40:55,920
8, AND THE SITES WERE ABLE TO

1032
00:40:55,920 --> 00:40:59,120
FOLLOW THEM UP THROUGH AGE 16,

1033
00:40:59,120 --> 00:40:59,880
AND COLLECT SIMILAR INFORMATION

1034
00:40:59,880 --> 00:41:01,840
AND KIND OF SEE WHAT HAPPENED

1035
00:41:01,840 --> 00:41:02,600
OVER TIME.

1036
00:41:02,600 --> 00:41:04,920
SO THERE'S LOTS OF REALLY GOOD

1037
00:41:04,920 --> 00:41:06,040
INFORMATION IN THAT REPORT.

1038
00:41:06,040 --> 00:41:10,600
I WAS JUST GOING TO HIGHLIGHT

1039
00:41:10,600 --> 00:41:12,720
ONE FIGURE, THIS SHOWS THE

1040
00:41:12,720 --> 00:41:14,960
PERCENT OF THESE CHILDREN WITH

1041
00:41:14,960 --> 00:41:16,760
CO-OCCURRING CONDITIONS BY AGE 8

1042
00:41:16,760 --> 00:41:20,880
YEARS, AND THEN BY AGE 16 YEARS.

1043
00:41:20,880 --> 00:41:27,560
AND SO WHAT YOU CAN REALLY SEE

1044
00:41:27,560 --> 00:41:28,640
HERE IS THAT THESE CHILDREN

1045
00:41:28,640 --> 00:41:32,920
CONTINUED TO BE IDENTIFIED WITH

1046
00:41:32,920 --> 00:41:33,800
DIFFERENT CO-OCCURRING

1047
00:41:33,800 --> 00:41:34,600
CONDITIONS OVER TIME, THIS COULD

1048
00:41:34,600 --> 00:41:35,880
BE IMPORTANT AND INDICATE KIND

1049
00:41:35,880 --> 00:41:39,720
OF A NEED FOR SPECIAL

1050
00:41:39,720 --> 00:41:42,320
CONSIDERATIONS OR PARTICULAR

1051
00:41:42,320 --> 00:41:43,880
SERVICES AS THESE CHILDREN AGE,

1052
00:41:43,880 --> 00:41:46,080
AND ESPECIALLY IN THAT

1053
00:41:46,080 --> 00:41:46,960
TRANSITION TO ADULTHOOD PERIOD,

1054
00:41:46,960 --> 00:41:51,400
THESE COULD BE REALLY IMPORTANT.

1055
00:41:51,400 --> 00:41:53,200
NEXT SLIDE PLEASE.

1056
00:41:53,200 --> 00:41:58,000
AND THEN WE ALSO BROUGHT SOME

1057
00:41:58,000 --> 00:42:00,720
POPULATION DATA, THIS NEWLY

1058
00:42:00,720 --> 00:42:02,880
DEFINED PROFOUND AUTISM, WE

1059
00:42:02,880 --> 00:42:04,320
WANTED TO KIND OF AT LEAST

1060
00:42:04,320 --> 00:42:08,720
DESCRIBE WHAT THAT LOOKED LIKE

1061
00:42:08,720 --> 00:42:09,520
IN POPULATION DATA.

1062
00:42:09,520 --> 00:42:11,800
AND SO BOTH THE PRIOR STUDY AND

1063
00:42:11,800 --> 00:42:13,520
THIS STUDY WERE LED BY MICHELLE

1064
00:42:13,520 --> 00:42:16,080
HUGHES, WHAT SHE WAS ABLE TO DO

1065
00:42:16,080 --> 00:42:19,680
WAS SHE LOOKED OVER FROM 2000 TO

1066
00:42:19,680 --> 00:42:22,400
2016 TO SEE WHAT THE POPULATION

1067
00:42:22,400 --> 00:42:26,000
PREVALENCE WAS OF PROFOUND

1068
00:42:26,000 --> 00:42:31,080
AUTISM, AND SHE FOUND 27% OF

1069
00:42:31,080 --> 00:42:33,240
CHILDREN WITH ASD HAD MET THIS

1070
00:42:33,240 --> 00:42:35,080
DEFINITION OF HAVING AN I.Q.

1071
00:42:35,080 --> 00:42:39,080
LESS THAN 50 OR BEING NON-OR

1072
00:42:39,080 --> 00:42:39,720
MINIMALLY VERBAL.

1073
00:42:39,720 --> 00:42:41,280
AND WHAT THIS GRAPH SHOWS IS

1074
00:42:41,280 --> 00:42:43,480
WHAT THE PREVALENCE LOOKED LIKE

1075
00:42:43,480 --> 00:42:46,600
OVER TIME, FOR BOTH PROFOUND AND

1076
00:42:46,600 --> 00:42:50,680
NON-PROFOUND AUTISM, WHERE YOU

1077
00:42:50,680 --> 00:42:53,960
CAN SEE INCREASES BUT THERE WERE

1078
00:42:53,960 --> 00:42:54,800
EVEN GREATER INCREASES IN

1079
00:42:54,800 --> 00:42:55,480
NON-PROFOUND AUTISM THAN

1080
00:42:55,480 --> 00:42:56,480
PROFOUND AUTISM.

1081
00:42:56,480 --> 00:42:58,400
AND DATA ARE MISSING FOR 2012

1082
00:42:58,400 --> 00:43:00,080
AND 2014 BECAUSE VERBAL STATUS

1083
00:43:00,080 --> 00:43:01,400
WAS NOT COLLECTED FOR THOSE

1084
00:43:01,400 --> 00:43:02,400
YEARS.

1085
00:43:02,400 --> 00:43:03,400
AND THIS IS PENDING PUBLICATION

1086
00:43:03,400 --> 00:43:09,920
ANY DAY IN PUBLIC HEALTH

1087
00:43:09,920 --> 00:43:13,440
REPORTS, HOPEFULLY SOON.

1088
00:43:13,440 --> 00:43:14,200
NEXT SLIDE.

1089
00:43:14,200 --> 00:43:17,360
WE ALSO PUBLISHED THE FIRST

1090
00:43:17,360 --> 00:43:19,560
STATEWIDE AND COUNTY-LEVEL ASD

1091
00:43:19,560 --> 00:43:20,160
ESTIMATES.

1092
00:43:20,160 --> 00:43:21,720
WE HAD SEVEN SITES PARTICIPATE

1093
00:43:21,720 --> 00:43:23,840
IN A PILOT STUDY, WHERE WHAT

1094
00:43:23,840 --> 00:43:26,920
THEY DID WAS THEY COMBINED

1095
00:43:26,920 --> 00:43:28,200
STATEWIDE HEALTH DATA AND

1096
00:43:28,200 --> 00:43:31,600
EDUCATION DATA, SO THEY LINKED

1097
00:43:31,600 --> 00:43:37,480
DATASETS TOGETHER TO PROVIDE

1098
00:43:37,480 --> 00:43:38,040
THESE ESTIMATES.

1099
00:43:38,040 --> 00:43:40,120
AND ESSENTIALLY THIS GRAPH IS

1100
00:43:40,120 --> 00:43:42,880
SHOWING THE COUNTY LEVEL

1101
00:43:42,880 --> 00:43:43,760
PREVALENCE OF AGES 3-21, WHICH

1102
00:43:43,760 --> 00:43:47,240
AT THE COUNTY LEVEL RANGED FROM

1103
00:43:47,240 --> 00:43:54,680
.5% TO 2.9% IN THIS DATASET.

1104
00:43:54,680 --> 00:43:55,560
WHAT WE THOUGHT WAS IMPORTANT

1105
00:43:55,560 --> 00:43:58,960
AND  INTERESTING ABOUT THIS AS

1106
00:43:58,960 --> 00:44:02,800
WELL WE WERE ABLE TO COMPARE

1107
00:44:02,800 --> 00:44:04,760
WITHIN THE ADDM -- YOU KNOW,

1108
00:44:04,760 --> 00:44:06,760
STUDY AREAS DOING THE FULL ADDM

1109
00:44:06,760 --> 00:44:10,480
METHODS FOR CHILDREN WHO WERE 8,

1110
00:44:10,480 --> 00:44:13,200
WE LOOKED AT PREVALENCE AMONG

1111
00:44:13,200 --> 00:44:13,960
8-YEAR-OLDS FROM THIS METHOD

1112
00:44:13,960 --> 00:44:15,720
COMPARED TO THE FULL ADDM AND

1113
00:44:15,720 --> 00:44:19,400
THEY WERE SIMILAR FOR CHILDREN

1114
00:44:19,400 --> 00:44:20,000
WHO WERE 8.

1115
00:44:20,000 --> 00:44:24,080
AND SO WE THINK THIS IS A REALLY

1116
00:44:24,080 --> 00:44:25,480
EXCITING METHOD THAT COULD BE

1117
00:44:25,480 --> 00:44:25,800
USEFUL.

1118
00:44:25,800 --> 00:44:27,760
I MEAN, THE TRADEOFF IS THAT IT

1119
00:44:27,760 --> 00:44:30,400
DOESN'T HAVE AS MUCH DETAILED

1120
00:44:30,400 --> 00:44:31,160
INFORMATION ABOUT CO-OCCURRING

1121
00:44:31,160 --> 00:44:34,480
INTELLECTUAL DISABILITY OR AGE

1122
00:44:34,480 --> 00:44:36,760
OF DIAGNOSIS, BUT IT COULD

1123
00:44:36,760 --> 00:44:38,080
REALLY POTENTIALLY HELP FOLKS

1124
00:44:38,080 --> 00:44:40,920
WHEN THEY DON'T HAVE MORE

1125
00:44:40,920 --> 00:44:41,880
RESOURCE INTENSIVE METHODS TO

1126
00:44:41,880 --> 00:44:44,400
GET DATA FOR AREAS THAT HAVE

1127
00:44:44,400 --> 00:44:48,280
NEVER HAD DATA BEFORE.

1128
00:44:48,280 --> 00:44:51,760
SO, THE NEXT SLIDE.

1129
00:44:51,760 --> 00:44:52,200
OH, SORRY.

1130
00:44:52,200 --> 00:44:55,480
SO THIS WAS THE GRAPH THAT KIND

1131
00:44:55,480 --> 00:44:57,120
OF SHOWED THE -- WHEN WE

1132
00:44:57,120 --> 00:44:59,200
COMPARED THIS IN THE STUDY AREAS

1133
00:44:59,200 --> 00:45:02,080
AGE 8 AND AGE 4, SO FOR AGE 8 I

1134
00:45:02,080 --> 00:45:05,240
THINK IT WAS JUST ON AVERAGE 6%

1135
00:45:05,240 --> 00:45:08,960
DIFFERENT FROM THE FULL ADDM

1136
00:45:08,960 --> 00:45:10,160
METHODS DESCRIBED, FOR AGE MORE

1137
00:45:10,160 --> 00:45:11,160
A LOT MORE VARIABLE.

1138
00:45:11,160 --> 00:45:15,080
THIS LIKELY REFLECTED THE

1139
00:45:15,080 --> 00:45:17,360
DIFFERENT KINDS OF DATA THAT

1140
00:45:17,360 --> 00:45:19,240
PEOPLE WERE BRINGING IN TO THIS

1141
00:45:19,240 --> 00:45:21,520
PROJECT COMPARED TO WHAT THEY

1142
00:45:21,520 --> 00:45:22,520
USED FOR ADDM.

1143
00:45:22,520 --> 00:45:30,440
AND SO THE NEXT SLIDE SHOULD BE

1144
00:45:30,440 --> 00:45:31,400
ACKNOWLEDGMENTS I THINK.

1145
00:45:31,400 --> 00:45:33,400
>>WE ARE REALLY
PRIVILEGED IN

1146
00:45:33,400 --> 00:45:35,480
THAT WE CAN SHARE WITH YOU ALL

1147
00:45:35,480 --> 00:45:38,840
OF THIS WORK BUT IT TAKES AN

1148
00:45:38,840 --> 00:45:40,560
ENORMOUS TEAM AND PEOPLE HAVE

1149
00:45:40,560 --> 00:45:43,040
WORKED SO, SO HARD OVER THE PAST

1150
00:45:43,040 --> 00:45:46,000
SEVERAL YEARS, THROUGH REALLY

1151
00:45:46,000 --> 00:45:47,560
CHALLENGING CIRCUMSTANCES AND WE

1152
00:45:47,560 --> 00:45:48,840
JUST REALLY APPRECIATE THAT WE

1153
00:45:48,840 --> 00:45:51,480
GET TO WORK WITH SUCH AN AMAZING

1154
00:45:51,480 --> 00:45:58,240
AND DEDICATED GROUP OF PEOPLE. 

1155
00:45:58,240 --> 00:46:00,680
>>THANK YOU SO MUCH.

1156
00:46:00,680 --> 00:46:01,520
ABSOLUTELY, WE REALLY APPRECIATE

1157
00:46:01,520 --> 00:46:06,120
THE TIME YOU TOOK AND EXCELLENT

1158
00:46:06,120 --> 00:46:07,120
PRESENTATION.

1159
00:46:07,120 --> 00:46:07,640
OKAY. 

1160
00:46:07,640 --> 00:46:10,920
LET'S DIVE INTO QUESTIONS.

1161
00:46:10,920 --> 00:46:14,160
YETTA, YOUR HAND WAS UP FIRST.

1162
00:46:14,160 --> 00:46:14,920
>>GOOD MORNING.

1163
00:46:14,920 --> 00:46:16,960
I THINK LARRY HAD HIS HAND UP

1164
00:46:16,960 --> 00:46:19,200
AND THEN I'M NEXT, I DON'T WANT

1165
00:46:19,200 --> 00:46:20,360
TO SKIP IN LINE

1166
00:46:20,360 --> 00:46:23,200
>>I WAS RELYING ON THE

1167
00:46:23,200 --> 00:46:23,600
COMPUTER.

1168
00:46:23,600 --> 00:46:28,120
WE'LL COME BACK TO YETTA.

1169
00:46:28,120 --> 00:46:29,120
>>THANK YOU.

1170
00:46:29,120 --> 00:46:29,760
>>YES, YES.

1171
00:46:29,760 --> 00:46:32,920
>>YOU WANT ME TO GO?

1172
00:46:32,920 --> 00:46:34,320
>>YES, LARRY, PLEASE GO
FIRST.

1173
00:46:34,320 --> 00:46:37,560
>>I WOULD HAVE DEFERRED
TO THE

1174
00:46:37,560 --> 00:46:39,560
COMPUTER TOO.

1175
00:46:39,560 --> 00:46:41,240
FIRST OF ALL, THANK YOU.

1176
00:46:41,240 --> 00:46:43,720
THOSE DATA ARE SO COMPELLING.

1177
00:46:43,720 --> 00:46:46,600
I KNOW YOU'VE BEEN ENGAGED IN

1178
00:46:46,600 --> 00:46:49,160
THIS FOR DECADES AT THIS POINT.

1179
00:46:49,160 --> 00:46:52,760
YOU'RE AWARE I MANAGED THE

1180
00:46:52,760 --> 00:46:57,400
IDeA DATA, AND WE REMAIN

1181
00:46:57,400 --> 00:46:59,200
PERFECTLY WILLING AND HAPPY TO

1182
00:46:59,200 --> 00:47:02,360
SUPPLY YOU WHATEVER DATA YOU

1183
00:47:02,360 --> 00:47:04,120
NEED FROM OUR SHOP.

1184
00:47:04,120 --> 00:47:04,560
SO --

1185
00:47:04,560 --> 00:47:05,000
>>THANK YOU.

1186
00:47:05,000 --> 00:47:07,880
>>PLEASE FEEL FREE TO
CONTACT

1187
00:47:07,880 --> 00:47:08,080
ME.

1188
00:47:08,080 --> 00:47:09,920
YOU PROBABLY ALREADY GO DIRECTLY

1189
00:47:09,920 --> 00:47:14,320
TO MY DATA TEAM, WHICH IS FINE.

1190
00:47:14,320 --> 00:47:16,520
THE ONE QUESTION I HAD, HAVE

1191
00:47:16,520 --> 00:47:20,880
Y'ALL BEGUN TO DO ANY

1192
00:47:20,880 --> 00:47:21,880
COMPARISONS INTERNATIONALLY, AS

1193
00:47:21,880 --> 00:47:23,600
TO WHERE THIS -- THESE LATEST

1194
00:47:23,600 --> 00:47:27,000
NUMBERS LINE UP?

1195
00:47:27,000 --> 00:47:30,760
I THOUGH KOREA DOES -- SOUTH

1196
00:47:30,760 --> 00:47:34,400
KOREA DOES A PRETTY GOOD

1197
00:47:34,400 --> 00:47:34,680
PREVALENCE.

1198
00:47:34,680 --> 00:47:35,680
I WON'T BELABOR IT.

1199
00:47:35,680 --> 00:47:37,520
YOU GET THE GIST.

1200
00:47:37,520 --> 00:47:37,840
THANK YOU.

1201
00:47:37,840 --> 00:47:38,200
>>YEAH.

1202
00:47:38,200 --> 00:47:40,000
>>FIRST OF ALL, THANK YOU
FOR

1203
00:47:40,000 --> 00:47:41,840
THE OFFER TO COLLABORATE.

1204
00:47:41,840 --> 00:47:42,920
AND IT'S SOMETHING WE INTEND TO

1205
00:47:42,920 --> 00:47:47,280
TAKE YOU UP ON.

1206
00:47:47,280 --> 00:47:50,280
WE REALLY -- I THINK THE

1207
00:47:50,280 --> 00:47:51,680
EDUCATION SYSTEM IS CRITICALLY

1208
00:47:51,680 --> 00:47:52,480
IMPORTANT TO SERVING CHILDREN

1209
00:47:52,480 --> 00:47:53,240
WITH AUTISM.

1210
00:47:53,240 --> 00:47:54,600
SOMETIMES IT'S THE ONLY SERVICE

1211
00:47:54,600 --> 00:47:58,400
PROVIDER IN A CERTAIN COMMUNITY

1212
00:47:58,400 --> 00:47:59,800
THAT PROVIDES ANY MEANINGFUL

1213
00:47:59,800 --> 00:48:01,160
SUPPORT AND SERVICES, SO WE

1214
00:48:01,160 --> 00:48:03,080
WOULD LOVE TO TALK MORE ABOUT

1215
00:48:03,080 --> 00:48:05,600
HOW WE CAN, YOU KNOW, USE WHAT

1216
00:48:05,600 --> 00:48:07,280
WE HAVE TO LEARN WHAT'S

1217
00:48:07,280 --> 00:48:08,720
HAPPENING AND WHAT'S NEEDED.

1218
00:48:08,720 --> 00:48:14,720
IN TERMS OF INTERNATIONAL

1219
00:48:14,720 --> 00:48:15,480
COMPARISONS, I'M RUSTY.

1220
00:48:15,480 --> 00:48:18,120
WE HAVEN'T GONE BACK AND TRIED

1221
00:48:18,120 --> 00:48:20,640
TO REFRESH THE LATEST.

1222
00:48:20,640 --> 00:48:22,800
WE DO KEEP LISTS OF AUTISM

1223
00:48:22,800 --> 00:48:25,320
PREVALENCE STUDIES ON THE CDC

1224
00:48:25,320 --> 00:48:27,080
WEBSITE THAT WE UPDATE, I THINK

1225
00:48:27,080 --> 00:48:29,360
MAYBE EVERY QUARTER OR SIX

1226
00:48:29,360 --> 00:48:32,560
MONTHS, SO WE WILL GO RE-READ

1227
00:48:32,560 --> 00:48:33,320
THAT.

1228
00:48:33,320 --> 00:48:34,400
WE'VE MOSTLY BEEN PAYING MORINGS

1229
00:48:34,400 --> 00:48:40,320
TO WHAT THE -- - MORE ATTENTION

1230
00:48:40,320 --> 00:48:44,160
TO THE NATIONAL SURVEYS, THEY

1231
00:48:44,160 --> 00:48:45,360
SOMETIMES COMBINE YEARS

1232
00:48:45,360 --> 00:48:47,080
TOGETHER.

1233
00:48:47,080 --> 00:48:48,520
WITH THIS LATEST DATA, CERTAINLY

1234
00:48:48,520 --> 00:48:50,600
WITH THE NATIONAL SURVEYS IT

1235
00:48:50,600 --> 00:48:53,560
SEEMS LIKE THEY ARE IN THE BALL

1236
00:48:53,560 --> 00:48:56,640
PARK WHERE WE'RE SEEING SIMILAR

1237
00:48:56,640 --> 00:48:58,840
THINGS BUT, YOU KNOW, EVERY

1238
00:48:58,840 --> 00:49:03,320
COMMUNITY IS SO DIFFERENT TOO,

1239
00:49:03,320 --> 00:49:06,040
AND I THINK THE VARIABILITY IS

1240
00:49:06,040 --> 00:49:07,240
ALWAYS, FOR ME, THE REALLY

1241
00:49:07,240 --> 00:49:08,360
INTERESTING PART RATHER THAN

1242
00:49:08,360 --> 00:49:11,760
JUST LIKE WHAT THE BIG NUMBER

1243
00:49:11,760 --> 00:49:11,920
IS.

1244
00:49:11,920 --> 00:49:16,160
>>YEAH, I THINK THESE
NUMBERS,

1245
00:49:16,160 --> 00:49:18,640
YOUR NUMBERS, ARE MUCH MORE IN

1246
00:49:18,640 --> 00:49:20,160
LINE WITH SOUTH KOREA'S FROM TWO

1247
00:49:20,160 --> 00:49:24,960
OR THREE OR FOUR YEARS AGO.

1248
00:49:24,960 --> 00:49:25,840
>>YEAH.

1249
00:49:25,840 --> 00:49:29,040
>>SEEN AS INCREDIBLY
HIGH, NOT

1250
00:49:29,040 --> 00:49:31,520
THAT OURS WEREN'T, BUT I THINK

1251
00:49:31,520 --> 00:49:32,800
IT'S THE NUMBER APPROACH IN

1252
00:49:32,800 --> 00:49:35,480
SOUTH KOREA BUT I DON'T KNOW

1253
00:49:35,480 --> 00:49:36,160
WHAT THEIR ABSOLUTE LATEST

1254
00:49:36,160 --> 00:49:36,920
NUMBERS ARE.

1255
00:49:36,920 --> 00:49:41,040
THANK YOU FOR YOUR WORK ON THIS.

1256
00:49:41,040 --> 00:49:43,880
>>THANK YOU.

1257
00:49:43,880 --> 00:49:44,640
>>OKAY.

1258
00:49:44,640 --> 00:49:44,840
YETTA?

1259
00:49:44,840 --> 00:49:47,760
>>THANK YOU, GOOD
MORNING, GOOD

1260
00:49:47,760 --> 00:49:49,240
TO SEE YOU BOTH.

1261
00:49:49,240 --> 00:49:52,000
HOW MANY STUDIES HAVE BEEN

1262
00:49:52,000 --> 00:49:53,200
REPRESENTED ACROSS ADDM NETWORKS

1263
00:49:53,200 --> 00:49:53,960
SINCE 2020?

1264
00:49:53,960 --> 00:49:55,480
YOU MIGHT NOT KNOW OFF TOP OF

1265
00:49:55,480 --> 00:49:58,560
YOUR HEAD BUT I'M CURIOUS.

1266
00:49:58,560 --> 00:50:00,200
>>YOU MEAN SINCE 2000?

1267
00:50:00,200 --> 00:50:01,160
>>SINCE 2000.

1268
00:50:01,160 --> 00:50:01,920
>>SINCE THE BEGINNING?

1269
00:50:01,920 --> 00:50:05,880
>>YES, SINCE THE
BEGINNING.

1270
00:50:05,880 --> 00:50:06,600
>>I THINK 20.

1271
00:50:06,600 --> 00:50:06,880
>>YEAH.

1272
00:50:06,880 --> 00:50:12,360
>>SOUND S ABOUT RIGHT.

1273
00:50:12,360 --> 00:50:14,400
>>IT'S ON OUR DATA

1274
00:50:14,400 --> 00:50:15,400
VISUALIZATION SURVEY, THAT MIGHT

1275
00:50:15,400 --> 00:50:17,600
BE THE EASIEST WAY, BUT WE DID

1276
00:50:17,600 --> 00:50:18,800
UPDATE THAT NUMBER WHEN WE WERE

1277
00:50:18,800 --> 00:50:20,800
DOING UPDATES THIS YEAR.

1278
00:50:20,800 --> 00:50:23,760
I THINK IT'S 20.

1279
00:50:23,760 --> 00:50:24,320
>>I WAS CURIOUS.

1280
00:50:24,320 --> 00:50:26,400
CAN YOU TALK ABOUT WHAT NEXT

1281
00:50:26,400 --> 00:50:28,360
STEPS ARE TO COLLECT DATA?

1282
00:50:28,360 --> 00:50:30,240
MAYBE AT A NATIONAL LEVEL, I'M

1283
00:50:30,240 --> 00:50:31,640
ALWAYS GOING TO PUSH THAT, WANT

1284
00:50:31,640 --> 00:50:37,680
TO KNOW IF THERE ARE THOUGHTS IN

1285
00:50:37,680 --> 00:50:41,520
THE PIPELINE ABOUT THAT. 

1286
00:50:41,520 --> 00:50:44,800
AND MY FINAL QUESTION, SPEAKING

1287
00:50:44,800 --> 00:50:50,360
TO WHY BLACK CHILDREN ARE BEING

1288
00:50:50,360 --> 00:50:51,360
DIAGNOSED CAN CO-OCCURRING I.D.

1289
00:50:51,360 --> 00:50:52,920
>>THE FIRST QUESTION,
WHAT'S

1290
00:50:52,920 --> 00:50:56,560
NEXT, WE HAVE A BUNCH OF STUFF

1291
00:50:56,560 --> 00:50:58,840
COMING OUT THIS SPRING, I THINK

1292
00:50:58,840 --> 00:51:00,120
WE'VE ALSO LEARNED AT THE

1293
00:51:00,120 --> 00:51:04,440
BEGINNING OF THE CALENDAR YEAR

1294
00:51:04,440 --> 00:51:06,720
THAT CONGRESS INCLUDED

1295
00:51:06,720 --> 00:51:08,160
ADDITIONAL RESOURCES TO EXPAND

1296
00:51:08,160 --> 00:51:13,520
THE NUMBER OF ADDM SITES AND

1297
00:51:13,520 --> 00:51:15,040
THEN ALSO TO INCORPORATE

1298
00:51:15,040 --> 00:51:20,000
CEREBRAL PALSY TRACKING IN A FEW

1299
00:51:20,000 --> 00:51:20,280
OF THEM.

1300
00:51:20,280 --> 00:51:21,720
WE'RE WAITING FOR PEOPLE TO PUSH

1301
00:51:21,720 --> 00:51:23,800
A BUTTON BEFORE WE CAN TALK

1302
00:51:23,800 --> 00:51:27,320
ABOUT EXACTLY WHAT IN A  -- THAT

1303
00:51:27,320 --> 00:51:28,960
WILL LOOK LIKE BUT THE TEAM HAS

1304
00:51:28,960 --> 00:51:29,960
BEEN WORKING HARD TO DO WHAT

1305
00:51:29,960 --> 00:51:30,920
CONGRESS ASKED US TO DO.

1306
00:51:30,920 --> 00:51:32,880
IN TERMS OF, YOU KNOW, THE

1307
00:51:32,880 --> 00:51:35,320
FUTURE, IT'S HARD TO PREDICT,

1308
00:51:35,320 --> 00:51:38,800
BUT I THINK THAT OVER THE PAST

1309
00:51:38,800 --> 00:51:41,560
SEVERAL YEARS THIS PROGRAM HAS

1310
00:51:41,560 --> 00:51:42,360
BASICALLY OVERHAULED JUST ABOUT

1311
00:51:42,360 --> 00:51:48,760
EVERY PART OF HOW IT DOES  ITS

1312
00:51:48,760 --> 00:51:49,640
WORK TO BE MORE EFFICIENT, WE'VE

1313
00:51:49,640 --> 00:51:52,160
BEEN ABLE TO SCALE ADDING AGE

1314
00:51:52,160 --> 00:51:52,360
GROUPS.

1315
00:51:52,360 --> 00:51:53,680
KELLY TALKED ABOUT HER WORK

1316
00:51:53,680 --> 00:51:55,320
BEING ABLE TO GET SOME DATA FOR

1317
00:51:55,320 --> 00:51:56,840
LIKE A WHOLE STATE FOR EVERY

1318
00:51:56,840 --> 00:52:00,800
COUNTY IN THE STATE, SO I THINK

1319
00:52:00,800 --> 00:52:02,240
WE'RE WELL SITUATED, TO DO THESE

1320
00:52:02,240 --> 00:52:04,000
THINGS, BUT THEN IT'S JUST A

1321
00:52:04,000 --> 00:52:05,360
QUESTION OF, YOU KNOW,

1322
00:52:05,360 --> 00:52:07,920
PRIORITIES AND WHETHER, YOU

1323
00:52:07,920 --> 00:52:09,240
KNOW, WHETHER WE'RE ASKED TO DO

1324
00:52:09,240 --> 00:52:11,560
IT AND HAVE THE RESOURCES TO DO

1325
00:52:11,560 --> 00:52:14,400
THAT BECAUSE AT THE SAME TIME,

1326
00:52:14,400 --> 00:52:16,040
YOU KNOW, WE HAVE TAKEN A

1327
00:52:16,040 --> 00:52:18,200
CAREFUL APPROACH TO THINK ABOUT

1328
00:52:18,200 --> 00:52:20,400
WHAT ARE THE INDICATORS THAT

1329
00:52:20,400 --> 00:52:22,160
PEOPLE REALLY EXPECT AND NEED

1330
00:52:22,160 --> 00:52:23,760
FROM THE ADDM NETWORK AND THAT

1331
00:52:23,760 --> 00:52:26,400
DOES INCLUDE THINGS LIKE

1332
00:52:26,400 --> 00:52:27,320
CO-OCCURRING INTELLECTUAL

1333
00:52:27,320 --> 00:52:29,480
DISABILITY, DOES INCLUDE THINGS

1334
00:52:29,480 --> 00:52:31,200
LIKE HOW EARLY ARE CHILDREN

1335
00:52:31,200 --> 00:52:36,480
GETTING IDENTIFIED WITH AUTISM,

1336
00:52:36,480 --> 00:52:39,120
AND THAT IS STILL -- REQUIRES

1337
00:52:39,120 --> 00:52:41,640
MORE INTENSIVE DATA COLLECTION

1338
00:52:41,640 --> 00:52:43,480
AND AS THINGS GET MORE

1339
00:52:43,480 --> 00:52:44,680
ELECTRONIC OR STRUCTURED THAT

1340
00:52:44,680 --> 00:52:46,760
COULD CHANGE TOO BUT I THINK

1341
00:52:46,760 --> 00:52:48,640
WE'RE WELL POISED TO DO

1342
00:52:48,640 --> 00:52:50,640
SOMETHING, JUST DEPENDS ON THAT

1343
00:52:50,640 --> 00:52:53,120
TRADEOFF BETWEEN DEPTH AND

1344
00:52:53,120 --> 00:52:56,760
BREADTH AND SPEED AND RESOURCES.

1345
00:52:56,760 --> 00:52:58,280
BUT I THINK WE'VE SHOWN THERE'S

1346
00:52:58,280 --> 00:53:04,040
DIFFERENT WAYS IT COULD BE DONE.

1347
00:53:04,040 --> 00:53:09,440
IN TERMS OF THE DIFFERENCES IN

1348
00:53:09,440 --> 00:53:10,840
PREVALENCE AMONG CO-OCCURRING

1349
00:53:10,840 --> 00:53:11,840
INTELLECTUAL DISABILITY, FOR ME

1350
00:53:11,840 --> 00:53:14,920
THAT WAS ONE OF THE SURPRISES IN

1351
00:53:14,920 --> 00:53:17,520
THE DATA THIS YEAR.

1352
00:53:17,520 --> 00:53:18,280
HISTORICALLY LIKE GOING BACK,

1353
00:53:18,280 --> 00:53:20,320
LIKE ON THAT SLIDE THAT SHOWED

1354
00:53:20,320 --> 00:53:23,240
LIKE YEAR OVER YEAR WHAT THE

1355
00:53:23,240 --> 00:53:24,200
DIFFERENCES WERE, WHEN MORE

1356
00:53:24,200 --> 00:53:26,400
WHITE CHILDREN WERE IDENTIFIED

1357
00:53:26,400 --> 00:53:27,840
WITH AUTISM OVERALL THAN BLACK

1358
00:53:27,840 --> 00:53:29,720
CHILDREN IT SEEMED LIKE MAYBE

1359
00:53:29,720 --> 00:53:32,120
ONE EXPLANATION FOR THAT HIGHER

1360
00:53:32,120 --> 00:53:32,720
CO-OCCURRENCE OF INTELLECTUAL

1361
00:53:32,720 --> 00:53:33,440
DISABILITY IS JUST THAT THOSE

1362
00:53:33,440 --> 00:53:35,200
WERE THE KIDS THAT WERE MORE

1363
00:53:35,200 --> 00:53:37,040
LIKELY TO COME TO ATTENTION.

1364
00:53:37,040 --> 00:53:39,440
AND IF THERE WERE DIFFERENCES ON

1365
00:53:39,440 --> 00:53:41,440
AVERAGE ON A GROUP LEVEL ABOUT

1366
00:53:41,440 --> 00:53:44,400
ACCESS TO SERVICES MAYBE

1367
00:53:44,400 --> 00:53:44,960
CHILDREN WITH INTELLECTUAL

1368
00:53:44,960 --> 00:53:46,240
DISABILITY WOULD BE MORE LIKELY

1369
00:53:46,240 --> 00:53:48,000
TO BE PICKED UP THAN CHILDREN

1370
00:53:48,000 --> 00:53:48,240
WITHOUT.

1371
00:53:48,240 --> 00:53:49,560
AND WE DO SEE THAT IN DATA WHEN

1372
00:53:49,560 --> 00:53:52,080
YOU LOOK AT THE AGE OF

1373
00:53:52,080 --> 00:53:54,120
DIAGNOSIS, THAT'S ONE OF THE FEW

1374
00:53:54,120 --> 00:53:55,880
TIMES WE COMPARE AGES, LIKE

1375
00:53:55,880 --> 00:53:56,640
CHILDREN WITH INTELLECTUAL

1376
00:53:56,640 --> 00:53:58,200
DISABILITY TEND TO BE DIAGNOSED

1377
00:53:58,200 --> 00:54:00,480
AT VERY YOUNG AGES, WITH AUTISM,

1378
00:54:00,480 --> 00:54:03,560
THAN CHILDREN THAT DON'T HAVE

1379
00:54:03,560 --> 00:54:04,960
INTELLECTUAL DISABILITY.

1380
00:54:04,960 --> 00:54:08,440
BUT AS THE MORE AND MORE

1381
00:54:08,440 --> 00:54:11,080
CHILDREN WERE BEING DETECTED AND

1382
00:54:11,080 --> 00:54:12,160
THE PREVALENCE NUMBERS EVENED

1383
00:54:12,160 --> 00:54:14,160
OUT AND THIS YEAR THE PREVALENCE

1384
00:54:14,160 --> 00:54:17,640
OF AUTISM AMONG BLACK CHILDREN

1385
00:54:17,640 --> 00:54:18,520
EXCEEDED WHITE CHILDREN, IT WAS

1386
00:54:18,520 --> 00:54:21,240
A BIT OF A SURPRISE TO ME AT

1387
00:54:21,240 --> 00:54:25,840
LEAST THAT THAT PROPORTION WITH

1388
00:54:25,840 --> 00:54:26,600
CO-OCCURRING INTELLECTUAL

1389
00:54:26,600 --> 00:54:28,360
DISABILITY WASN'T -- DIDN'T

1390
00:54:28,360 --> 00:54:30,120
REALLY BUDGE.

1391
00:54:30,120 --> 00:54:31,880
AND SO THESE DATA TELL US WHAT

1392
00:54:31,880 --> 00:54:35,240
IS HAPPENING BUT THEY DON'T

1393
00:54:35,240 --> 00:54:37,120
ALWAYS TELL US WHY, AND THERE

1394
00:54:37,120 --> 00:54:38,640
ARE DIFFERENT IDEAS ABOUT WHAT

1395
00:54:38,640 --> 00:54:44,120
THIS COULD MEAN, IT COULD MEAN

1396
00:54:44,120 --> 00:54:46,440
THERE STILL COULD BE

1397
00:54:46,440 --> 00:54:47,760
UNDERIDENTIFICATION IN THAT

1398
00:54:47,760 --> 00:54:48,640
GROUP, AMONG BLACK CHILDREN.

1399
00:54:48,640 --> 00:54:50,040
WE DON'T KNOW WHAT THE CEILING

1400
00:54:50,040 --> 00:54:52,640
WOULD BE.

1401
00:54:52,640 --> 00:54:54,200
IT COULD ALSO BE -- SOMEONE

1402
00:54:54,200 --> 00:54:57,360
PROPOSED COULD BE LACK OF EARLY

1403
00:54:57,360 --> 00:54:58,680
INTERVENTION, THAT COULD

1404
00:54:58,680 --> 00:55:01,320
POTENTIALLY, YOU KNOW, IMPROVE

1405
00:55:01,320 --> 00:55:03,280
THAT.

1406
00:55:03,280 --> 00:55:05,480
YOU KNOW, THEIR PERFORMANCE

1407
00:55:05,480 --> 00:55:05,760
EARLY.

1408
00:55:05,760 --> 00:55:07,560
WE DON'T KNOW.

1409
00:55:07,560 --> 00:55:10,920
BUT IT'S CERTAINLY AN IMPORTANT

1410
00:55:10,920 --> 00:55:11,160
FINDING.

1411
00:55:11,160 --> 00:55:13,160
>>DETERMINANTS OF HEALTH.

1412
00:55:13,160 --> 00:55:13,640
>>YEAH.

1413
00:55:13,640 --> 00:55:15,520
>>UPSTREAM FACTORS OF
MATERNAL

1414
00:55:15,520 --> 00:55:17,960
HEALTH, AND WHICH WE KNOW THERE

1415
00:55:17,960 --> 00:55:19,960
ARE DISPARITIES CAN ALSO PLAY A

1416
00:55:19,960 --> 00:55:23,280
ROLE IN INTELLECTUAL DISABILITY.

1417
00:55:23,280 --> 00:55:28,480
SO WE CAN'T SEE IN OUR DATA THE

1418
00:55:28,480 --> 00:55:32,520
REASON WHY, BUT IT'S DEFINITELY

1419
00:55:32,520 --> 00:55:33,080
CONCERNING.

1420
00:55:33,080 --> 00:55:33,720
>>YEAH.

1421
00:55:33,720 --> 00:55:35,240
AGAIN, THERE'S NO BIOLOGICAL

1422
00:55:35,240 --> 00:55:37,360
REASON WHY AUTISM PREVALENCE OR

1423
00:55:37,360 --> 00:55:38,320
CO-OCCURRING INTELLECTUAL

1424
00:55:38,320 --> 00:55:39,320
DISABILITY SHOULD BE DIFFERENT

1425
00:55:39,320 --> 00:55:40,720
BETWEEN THE DIFFERENT GROUPS SO

1426
00:55:40,720 --> 00:55:42,800
I THINK IT DOES WARRANT

1427
00:55:42,800 --> 00:55:44,560
CONSIDERATION OF LIKE WHAT OTHER

1428
00:55:44,560 --> 00:55:47,960
FACTORS ARE AT PLAY.

1429
00:55:47,960 --> 00:55:49,600
>>THANK YOU SO MUCH.

1430
00:55:49,600 --> 00:55:51,200
I APPRECIATE YOUR WORK.

1431
00:55:51,200 --> 00:55:52,960
>>GOOD TO SEE YOU.

1432
00:55:52,960 --> 00:56:03,200
>>THANK YOU.

1433
00:56:03,880 --> 00:56:04,240
SO YOU'RE NEXT.

1434
00:56:04,240 --> 00:56:05,480
>>THEY SAY COMMUNITIES OF
COLOR

1435
00:56:05,480 --> 00:56:10,080
HAVE BEEN SHOUTING FROM THE ROOF

1436
00:56:10,080 --> 00:56:14,240
TOP FOR DECADES CHILDREN HAVE

1437
00:56:14,240 --> 00:56:15,760
BEEN HISTORICALLY MISDIAGNOSED,

1438
00:56:15,760 --> 00:56:19,920
OPPOSITIONAL DEFIANCE DISORDER,

1439
00:56:19,920 --> 00:56:21,880
RELATED DIAGNOSES, SIMILARLY

1440
00:56:21,880 --> 00:56:23,760
RATHER THAN RECEIVING

1441
00:56:23,760 --> 00:56:25,160
CLASSIFICATION BY A SCHOOL

1442
00:56:25,160 --> 00:56:28,280
DISTRICT FOR ADEQUATE SERVICES,

1443
00:56:28,280 --> 00:56:30,640
CHILDREN ARE LIKELY TO BE

1444
00:56:30,640 --> 00:56:33,280
LABELED AS EMOTIONALLY DISTURBED

1445
00:56:33,280 --> 00:56:36,800
OR MISLABEL AS THEY TRAVEL ON

1446
00:56:36,800 --> 00:56:37,880
PRE-K TO PRISON POPULATION.

1447
00:56:37,880 --> 00:56:40,520
I SEE A LOT OF PEOPLE JUMPING ON

1448
00:56:40,520 --> 00:56:41,720
THE BANDWAGON WITH ALARMIST

1449
00:56:41,720 --> 00:56:43,560
RHETORIC TO CDC DATA, LITTLE TO

1450
00:56:43,560 --> 00:56:45,440
NO PRACTICAL EFFORT NOR

1451
00:56:45,440 --> 00:56:50,360
RESOURCES BEING DEVOTED TO

1452
00:56:50,360 --> 00:56:52,880
CULTURALLY AFFIRMING CARE FOR

1453
00:56:52,880 --> 00:56:54,480
OUR KIDS, IT'S DISGUSTING,

1454
00:56:54,480 --> 00:56:56,920
PEOPLE STOP NEED TO USING US IN

1455
00:56:56,920 --> 00:57:00,760
NUMBERS WHILE CONVENIENT WHILE

1456
00:57:00,760 --> 00:57:09,160
POLICIES REGARDING RESTRAINT,

1457
00:57:09,160 --> 00:57:10,080
INSTITUTIONAL SURVEILLANCE, THAT

1458
00:57:10,080 --> 00:57:13,080
HARM US, WE AREN'T YOUR TOKENS.

1459
00:57:13,080 --> 00:57:14,920
WITHIN THE SPAN OF ONE YEAR HAVE

1460
00:57:14,920 --> 00:57:17,120
SEEN SIGNIFICANT REVISION OF

1461
00:57:17,120 --> 00:57:18,240
PROPOSED CRITERIA FOR PROFOUND

1462
00:57:18,240 --> 00:57:20,080
AUTISM, I WOULD LIKE YOU TO

1463
00:57:20,080 --> 00:57:22,800
CLARIFY THE JUSTIFICATION FOR

1464
00:57:22,800 --> 00:57:24,360
EMERGING GROUPS OF INDIVIDUALS

1465
00:57:24,360 --> 00:57:28,400
WITH ALLEGED I.Q. UNDER 50 WITH

1466
00:57:28,400 --> 00:57:32,080
GROUPS OF MINIMALLY NON-SPEAKING

1467
00:57:32,080 --> 00:57:33,760
INDIVIDUALS, GIVEN FOR MANY

1468
00:57:33,760 --> 00:57:36,920
NON-SPEAKING INDIVIDUALS I.Q. IS

1469
00:57:36,920 --> 00:57:38,000
OFTEN IMPROPERLY CALCULATED.

1470
00:57:38,000 --> 00:57:40,200
I ALSO WANTED TO KNOW DIFFERENCE

1471
00:57:40,200 --> 00:57:41,720
BETWEEN INDIVIDUALS WHO HAVE

1472
00:57:41,720 --> 00:57:43,920
I.Q.s UNDER 50 WHO ARE

1473
00:57:43,920 --> 00:57:47,640
SPEAKING, COMPARED TO THOSE WHO

1474
00:57:47,640 --> 00:57:49,080
ARE NON-SPEAKING BECAUSE

1475
00:57:49,080 --> 00:57:50,800
INTELLECTUAL DISABILITY ISN'T

1476
00:57:50,800 --> 00:57:53,120
SYNONYMOUS WITH BEING

1477
00:57:53,120 --> 00:57:54,880
NON-SPEAKING, IT CAN CO-OCCUR

1478
00:57:54,880 --> 00:57:58,480
WITH IT BUT SO CAN AVERAGE I.Q.

1479
00:57:58,480 --> 00:58:00,320
AND INTELLECTUAL GIFTEDNESS.

1480
00:58:00,320 --> 00:58:03,360
THEY SAY CONFLATING THE TWO

1481
00:58:03,360 --> 00:58:07,440
UNNECESSARILY CAN CREATE A LOT

1482
00:58:07,440 --> 00:58:07,720
OF CONCERNS.

1483
00:58:07,720 --> 00:58:09,040
>>WELL, THANK YOU.

1484
00:58:09,040 --> 00:58:12,720
WE APPRECIATE THE COMMENT.

1485
00:58:12,720 --> 00:58:15,680
AND CERTAINLY LIKE THE RACIAL

1486
00:58:15,680 --> 00:58:20,040
DIFFERENCES IN PREVALENCE AND

1487
00:58:20,040 --> 00:58:23,440
THE REPORTING OF DISPARITIES IN

1488
00:58:23,440 --> 00:58:23,960
CO-OCCURRING INTELLECTUAL

1489
00:58:23,960 --> 00:58:26,400
ABILITY, IT'S SOMETHING THAT,

1490
00:58:26,400 --> 00:58:28,920
YOU KNOW, THESE HAVE BEEN

1491
00:58:28,920 --> 00:58:30,240
CERTAINLY WITH CO-OCCURRING

1492
00:58:30,240 --> 00:58:31,960
INTELLECTUAL DISABILITIES HAVE

1493
00:58:31,960 --> 00:58:33,440
BEEN A PERSISTENT FINDING AND

1494
00:58:33,440 --> 00:58:35,720
SOMETHING WE'VE BEEN CALLED TO

1495
00:58:35,720 --> 00:58:37,440
PUT MORE EMPHASIS IN TALKING

1496
00:58:37,440 --> 00:58:41,560
ABOUT RATHER THAN JUST SETTING

1497
00:58:41,560 --> 00:58:42,040
IT ASIDE.

1498
00:58:42,040 --> 00:58:44,560
THERE IS A LOT MORE TO

1499
00:58:44,560 --> 00:58:48,960
UNDERSTAND AND CERTAINLY A LOT

1500
00:58:48,960 --> 00:58:49,840
MORE TO DO.

1501
00:58:49,840 --> 00:58:53,320
>>I'LL SAY TO YOUR POINT
ABOUT

1502
00:58:53,320 --> 00:58:54,880
THAT PEOPLE HAVE BEEN AROUND, I

1503
00:58:54,880 --> 00:58:57,560
THOUGHT THAT WAS DEFINITELY THE

1504
00:58:57,560 --> 00:58:59,160
MESSAGE OF THE PREPARED

1505
00:58:59,160 --> 00:59:00,160
COMMENTARY IN STAT THAT WAS

1506
00:59:00,160 --> 00:59:02,200
WRITTEN WITH THE RELEASE AS

1507
00:59:02,200 --> 00:59:04,520
WELL, WHICH WAS ESSENTIALLY KIND

1508
00:59:04,520 --> 00:59:07,960
OF WHAT PEOPLE IN THE COMMUNITY

1509
00:59:07,960 --> 00:59:10,760
KNOW IS THESE, YOU KNOW, THAT

1510
00:59:10,760 --> 00:59:14,720
IT'S NO SURPRISE, SO I THOUGHT

1511
00:59:14,720 --> 00:59:20,280
THAT WAS ALSO A GOOD COMMENT.

1512
00:59:20,280 --> 00:59:23,480
CHANGE IN PROFOUND --

1513
00:59:23,480 --> 00:59:25,480
>>PROFOUND AUTISM
ANALYSIS, SO,

1514
00:59:25,480 --> 00:59:28,560
I THINK IT'S REALLY IMPORTANT TO

1515
00:59:28,560 --> 00:59:31,120
CLARIFY WHAT CDC'S ROLE IS IN

1516
00:59:31,120 --> 00:59:34,040
TERMS OF, YOU KNOW, SETTING

1517
00:59:34,040 --> 00:59:35,800
POLICIES OR STANDARDS FOR HOW

1518
00:59:35,800 --> 00:59:37,320
CHILDREN ARE CLASSIFIED.

1519
00:59:37,320 --> 00:59:39,520
SO OUR ROLE IS REALLY TO REPORT

1520
00:59:39,520 --> 00:59:42,400
DATA AND TO CONTRIBUTE DATA TO

1521
00:59:42,400 --> 00:59:44,200
THESE CONVERSATIONS, AND THESE

1522
00:59:44,200 --> 00:59:47,400
IDEAS THAT ARE BEING, YOU KNOW,

1523
00:59:47,400 --> 00:59:48,840
PROPOSED BY, YOU KNOW, NO ONE

1524
00:59:48,840 --> 00:59:52,320
FROM CDC HAD A ROLE ON "THE

1525
00:59:52,320 --> 00:59:54,840
LANCET" COMMISSION THAT

1526
00:59:54,840 --> 00:59:56,280
DEVELOPED THIS DEFINITION, BUT

1527
00:59:56,280 --> 00:59:58,680
IT IS POTENTIALLY AN IMPORTANT

1528
00:59:58,680 --> 01:00:01,720
IDEA ABOUT MAYBE THERE'S A WAY

1529
01:00:01,720 --> 01:00:03,160
TO DEFINE A SET OF

1530
01:00:03,160 --> 01:00:04,040
CHARACTERISTICS THAT APPLY TO

1531
01:00:04,040 --> 01:00:11,480
SOME PEOPLE ON THE SPECTRUM, AND

1532
01:00:11,480 --> 01:00:14,480
IT'S NOT -- WE DID OUR BEST TO

1533
01:00:14,480 --> 01:00:16,280
APPLY THOSE CHARACTERISTICS TO

1534
01:00:16,280 --> 01:00:18,920
THE DATA WE HAD RATHER THAN US

1535
01:00:18,920 --> 01:00:21,320
DECIDING WHAT THEY SHOULD BE, WE

1536
01:00:21,320 --> 01:00:23,480
TOOK THIS DEFINITION AND WITH

1537
01:00:23,480 --> 01:00:24,480
THE UNDERSTANDING THAT LIKE A

1538
01:00:24,480 --> 01:00:27,560
LOT OF THINGS INCLUDING

1539
01:00:27,560 --> 01:00:30,400
DEFINITION OF AUTISM ITSELF, IT

1540
01:00:30,400 --> 01:00:32,440
WILL PROBABLY BE ITERATIVE, IT

1541
01:00:32,440 --> 01:00:34,560
WILL PROBABLY BE, YOU KNOW, AS

1542
01:00:34,560 --> 01:00:37,200
PEOPLE LEARN ABOUT WHAT'S USEFUL

1543
01:00:37,200 --> 01:00:38,840
AND WHAT, YOU KNOW, WHAT KNOWS

1544
01:00:38,840 --> 01:00:41,440
CHOICES REALLY MEAN WHEN TRYING

1545
01:00:41,440 --> 01:00:44,320
TO DESCRIBE DIFFERENT GROUPS OF

1546
01:00:44,320 --> 01:00:46,280
PEOPLE FOR DIFFERENT PURPOSES,

1547
01:00:46,280 --> 01:00:50,320
IT COULD EVOLVE OVER TIME.

1548
01:00:50,320 --> 01:00:52,800
AND SO OUR POSITION ON THIS IS

1549
01:00:52,800 --> 01:00:55,360
JUST THAT I THINK THIS IS AN

1550
01:00:55,360 --> 01:00:57,320
AREA WHERE THERE'S A DATA GAP,

1551
01:00:57,320 --> 01:01:03,040
AND WE'RE ABLE TO CONTRIBUTE TO

1552
01:01:03,040 --> 01:01:08,400
IT BUT IT'S NOT -- WE AREN'T

1553
01:01:08,400 --> 01:01:09,840
TAKING A POSITION ON WHETHER

1554
01:01:09,840 --> 01:01:12,520
THAT IS A STANDARD THE COMMUNITY

1555
01:01:12,520 --> 01:01:13,640
IS -- WE'RE NOT DIRECTING THE

1556
01:01:13,640 --> 01:01:14,960
COMMUNITY TO USE IT.

1557
01:01:14,960 --> 01:01:16,400
WE'RE SAYING THIS IS WHAT IT

1558
01:01:16,400 --> 01:01:20,560
LOOKS LIKE IF WE APPLY IT TO THE

1559
01:01:20,560 --> 01:01:21,640
POPULATION DATA WE HAVE.

1560
01:01:21,640 --> 01:01:24,400
AND ALL OF THE ISSUES ABOUT, YOU

1561
01:01:24,400 --> 01:01:29,200
KNOW, SUBTLETIES IN TRYING TO

1562
01:01:29,200 --> 01:01:32,040
MEASURE INTELLECTUAL ABILITY,

1563
01:01:32,040 --> 01:01:32,880
NON-VERBAL STATUS, THOSE ARE

1564
01:01:32,880 --> 01:01:34,760
DIFFICULT EVEN IF YOU'RE MAKING

1565
01:01:34,760 --> 01:01:36,480
THOSE ASSESSMENTS IN A CLINICAL

1566
01:01:36,480 --> 01:01:38,840
SETTING AND AT A POPULATION

1567
01:01:38,840 --> 01:01:40,080
LEVEL OFTENTIMES THE THINGS

1568
01:01:40,080 --> 01:01:41,240
YOU'RE TRYING ESTIMATE YOU HAVE

1569
01:01:41,240 --> 01:01:44,080
TO DO FROM LESS THAN PERFECT

1570
01:01:44,080 --> 01:01:45,120
MEASUREMENTS, AND THAT'S

1571
01:01:45,120 --> 01:01:47,440
ACTUALLY A BIG PART OF OUR WORK

1572
01:01:47,440 --> 01:01:48,760
AND SO WE CAN APPRECIATE THE

1573
01:01:48,760 --> 01:01:53,480
COMMENTS ABOUT HOW CHALLENGING

1574
01:01:53,480 --> 01:01:54,280
THOSE ARE TO MEASURE.

1575
01:01:54,280 --> 01:01:59,400
>>THANK YOU.

1576
01:01:59,400 --> 01:01:59,560
JOE?

1577
01:01:59,560 --> 01:02:00,680
>>OKAY, ABOUT.

1578
01:02:00,680 --> 01:02:01,040
THANKS.

1579
01:02:01,040 --> 01:02:03,240
WELL, THANKS FOR A GREAT

1580
01:02:03,240 --> 01:02:05,400
PRESENTATION AND FOR YOUR REALLY

1581
01:02:05,400 --> 01:02:08,360
GREAT WORK AND OBVIOUSLY HARD

1582
01:02:08,360 --> 01:02:09,520
WORK.

1583
01:02:09,520 --> 01:02:11,880
I THINK YOU GUYS WERE ON BEFORE,

1584
01:02:11,880 --> 01:02:14,600
I MAY HAVE ASKED THE -- RAISED

1585
01:02:14,600 --> 01:02:15,480
THE SAME ISSUE, APOLOGIES FOR

1586
01:02:15,480 --> 01:02:17,440
BEING A BROKEN RECORD HERE.

1587
01:02:17,440 --> 01:02:20,960
I WANT TO FOCUS ON WHAT

1588
01:02:20,960 --> 01:02:25,320
POTENTIAL ASCERTAINMENT BIASES

1589
01:02:25,320 --> 01:02:26,920
EXIST IN THIS DATA.

1590
01:02:26,920 --> 01:02:30,800
I'M A CLINICIAN IN A RURAL

1591
01:02:30,800 --> 01:02:31,400
STATE.

1592
01:02:31,400 --> 01:02:33,280
TERTIARY CARE CENTER.

1593
01:02:33,280 --> 01:02:36,360
AND THERE'S A TREMENDOUS PUSH

1594
01:02:36,360 --> 01:02:39,480
FOR US TO HELP KIDS GET SERVICES

1595
01:02:39,480 --> 01:02:43,000
IN REMOTE AREAS THAT DON'T HAVE

1596
01:02:43,000 --> 01:02:43,280
SERVICES.

1597
01:02:43,280 --> 01:02:46,080
AND OFTEN THE TICKET ENDS UP

1598
01:02:46,080 --> 01:02:48,920
BEING A DIAGNOSIS OF AUTISM, YOU

1599
01:02:48,920 --> 01:02:49,440
KNOW.

1600
01:02:49,440 --> 01:02:51,320
THAT'S UNFORTUNATE.

1601
01:02:51,320 --> 01:02:55,240
SO I THINK THAT THAT'S A PROBLEM

1602
01:02:55,240 --> 01:02:57,560
IN ASCERTAINING SORT OF THROUGH

1603
01:02:57,560 --> 01:03:00,280
THE SCHOOLS, AND WITH -- I'M NOT

1604
01:03:00,280 --> 01:03:02,560
EXACTLY SURE WHAT QUALIFIED

1605
01:03:02,560 --> 01:03:05,360
PROFESSIONALS ARE, BUT I THINK

1606
01:03:05,360 --> 01:03:06,640
THERE'S SOME INHERENT ISSUES

1607
01:03:06,640 --> 01:03:07,160
THERE.

1608
01:03:07,160 --> 01:03:09,040
AND I WORRY THAT WHAT WE'RE

1609
01:03:09,040 --> 01:03:11,040
TRACKING IS A SORT OF ANOTHER

1610
01:03:11,040 --> 01:03:13,240
SOCIAL PHENOMENON AND NOT

1611
01:03:13,240 --> 01:03:15,640
NECESSARILY JUST, YOU KNOW, THE

1612
01:03:15,640 --> 01:03:17,080
ACTUAL PREVALENCE.

1613
01:03:17,080 --> 01:03:19,800
AND I KIND OF RECALL MAYBE THIS

1614
01:03:19,800 --> 01:03:22,920
IS BEFORE YOUR TIME, BUT SORT OF

1615
01:03:22,920 --> 01:03:26,360
LANDMARK ECA STUDIES IN THE

1616
01:03:26,360 --> 01:03:27,480
'80s OF PSYCHIATRIC

1617
01:03:27,480 --> 01:03:27,880
EPIDEMIOLOGY.

1618
01:03:27,880 --> 01:03:30,640
AND THERE WAS ONE SORT OF ROGUE

1619
01:03:30,640 --> 01:03:33,720
GROUP THAT INSTEAD OF USING THE

1620
01:03:33,720 --> 01:03:35,800
METHODS THAT HAD BEEN USED

1621
01:03:35,800 --> 01:03:40,480
THROUGHOUT THE ECA, THEY DID A

1622
01:03:40,480 --> 01:03:41,440
DOOR-TO-DOOR MORE CLASSIC

1623
01:03:41,440 --> 01:03:43,240
TRADITIONAL EPIDEMIOLOGIC STUDY.

1624
01:03:43,240 --> 01:03:45,720
THE RESULTS WERE QUITE

1625
01:03:45,720 --> 01:03:46,080
DIFFERENT.

1626
01:03:46,080 --> 01:03:50,080
SO, I DO WORRY ABOUT THAT, THAT

1627
01:03:50,080 --> 01:03:53,160
I APPRECIATE THE NEED TO, YOU

1628
01:03:53,160 --> 01:03:54,600
KNOW, CUT COSTS AND BE

1629
01:03:54,600 --> 01:03:56,680
EFFICIENT, BUT I THINK AT SOME

1630
01:03:56,680 --> 01:04:02,680
POINT WE REALLY DO NEED KIND OF

1631
01:04:02,680 --> 01:04:03,240
A TRADITIONAL DOOR-TO-DOOR

1632
01:04:03,240 --> 01:04:04,560
EPIDEMIOLOGIC STUDY TO HAVE SOME

1633
01:04:04,560 --> 01:04:07,480
KIND OF GROUND TRUTH HERE.

1634
01:04:07,480 --> 01:04:11,120
>>YEAH, I THINK THAT

1635
01:04:11,120 --> 01:04:14,160
ENCAPSULATES A REALLY

1636
01:04:14,160 --> 01:04:15,440
LONG-RUNNING -- ALMOST LIKE

1637
01:04:15,440 --> 01:04:16,120
PHILOSOPHICAL DEBATE IN THIS

1638
01:04:16,120 --> 01:04:20,520
SPACE, YOU KNOW, THE IDEA ARE WE

1639
01:04:20,520 --> 01:04:22,160
REALLY MEASURING TRUE AUTISM,

1640
01:04:22,160 --> 01:04:24,760
AND THE CHALLENGE I THINK IS TO

1641
01:04:24,760 --> 01:04:27,320
SAY TO WHAT STANDARD?

1642
01:04:27,320 --> 01:04:28,600
WHAT IS THE GROUND TRUTH, WHO

1643
01:04:28,600 --> 01:04:30,000
HAS DONE THIS?

1644
01:04:30,000 --> 01:04:32,120
IN ORDER TO IMPLEMENT SOMETHING

1645
01:04:32,120 --> 01:04:34,160
LIKE THAT YOU WOULD HAVE, YOU

1646
01:04:34,160 --> 01:04:37,360
KNOW, ANY STUDY IN WHICH YOU

1647
01:04:37,360 --> 01:04:38,840
NEED WILLING PARTICIPANTS THAT

1648
01:04:38,840 --> 01:04:42,040
THERE WOULD BE, YOU KNOW, ISSUES

1649
01:04:42,040 --> 01:04:43,400
OF CONSENT, ISSUES OF SCALE,

1650
01:04:43,400 --> 01:04:46,120
LIKE HOW MANY PEOPLE IN WHAT

1651
01:04:46,120 --> 01:04:48,720
COMMUNITIES, HOW WOULD YOU KNOW

1652
01:04:48,720 --> 01:04:51,040
WHAT YOU WOULD SEE, AND WOULD

1653
01:04:51,040 --> 01:04:52,880
THAT GENERALIZE, YOU KNOW, IF

1654
01:04:52,880 --> 01:04:56,280
YOU'RE GOING DOOR TO DOOR, IN

1655
01:04:56,280 --> 01:04:58,040
ONE COMMUNITY, WITH YOU GET THE

1656
01:04:58,040 --> 01:05:00,440
SAME RESULT IN ANOTHER STATE.

1657
01:05:00,440 --> 01:05:02,920
AND SO I THINK I GUESS I

1658
01:05:02,920 --> 01:05:04,720
WOULDN'T SAY THAT IT'S TOTALLY

1659
01:05:04,720 --> 01:05:07,640
IN THE NAME OF, YOU KNOW,

1660
01:05:07,640 --> 01:05:08,960
EFFICIENCY BUT THESE DATA DO

1661
01:05:08,960 --> 01:05:11,360
SHOW WHAT THE ACTUAL PRACTICES

1662
01:05:11,360 --> 01:05:13,880
ARE IN THESE COMMUNITIES, WHICH

1663
01:05:13,880 --> 01:05:16,200
IS ALSO IMPORTANT, IF THE IDEA

1664
01:05:16,200 --> 01:05:19,360
OF, YOU KNOW, LIKE YOU HAD

1665
01:05:19,360 --> 01:05:20,320
MENTIONED, IF IDENTIFYING A

1666
01:05:20,320 --> 01:05:22,960
CHILD HELPS GET THEM INTO

1667
01:05:22,960 --> 01:05:23,720
SERVICES, THAT I'M ASSUMING

1668
01:05:23,720 --> 01:05:25,600
EVERYONE IS ACTING IN GOOD FAITH

1669
01:05:25,600 --> 01:05:26,920
AND WOULD SAY THEY NEED THESE

1670
01:05:26,920 --> 01:05:32,280
SERVICES AND WOULD STAND TO

1671
01:05:32,280 --> 01:05:33,920
BENEFIT FROM THEM, IT'S -- THERE

1672
01:05:33,920 --> 01:05:35,640
IS PUBLIC HEALTH UTILITY IN

1673
01:05:35,640 --> 01:05:39,280
UNDERSTANDING THOSE PATTERNS OF

1674
01:05:39,280 --> 01:05:42,240
PRACTICES, THE IDEA OF WHAT IS

1675
01:05:42,240 --> 01:05:45,960
THE ACTUAL, YOU KNOW, TRUTH OF

1676
01:05:45,960 --> 01:05:46,920
AUTISM, YOU KNOW, THAT WOULD BE

1677
01:05:46,920 --> 01:05:49,320
SOMETHING THAT WOULD BE VERY

1678
01:05:49,320 --> 01:05:49,760
INTERESTING.

1679
01:05:49,760 --> 01:05:50,920
WE'D BE VERY INTERESTED IN

1680
01:05:50,920 --> 01:05:52,200
MEASURING IT BUT I THINK WE

1681
01:05:52,200 --> 01:05:54,040
WOULD LOOK TO OUR COLLEAGUES

1682
01:05:54,040 --> 01:05:54,840
WITH MORE CLINICAL EXPERTISE

1683
01:05:54,840 --> 01:06:02,920
ABOUT WHAT IS THAT OBJECTIVE

1684
01:06:02,920 --> 01:06:03,280
GROUND TRUTH.

1685
01:06:03,280 --> 01:06:03,720
>>THANKS VERY MUCH.

1686
01:06:03,720 --> 01:06:06,000
>>SEVERAL HANDS UP AND
I'M

1687
01:06:06,000 --> 01:06:08,640
ACKNOWLEDGING WE HAVE 8 1/2

1688
01:06:08,640 --> 01:06:08,920
MINUTES.

1689
01:06:08,920 --> 01:06:10,720
LET'S GET THROUGH AS MANY AS WE

1690
01:06:10,720 --> 01:06:18,440
CAN BEFORE THE BREAK.

1691
01:06:18,440 --> 01:06:19,160
LINDSAY, YOU'RE NEXT.

1692
01:06:19,160 --> 01:06:21,000
>>CAN YOU SEE ME?

1693
01:06:21,000 --> 01:06:24,400
>>WE CAN HEAR YOU NOW.

1694
01:06:24,400 --> 01:06:25,000
>>OKAY, GREAT.

1695
01:06:25,000 --> 01:06:28,920
THANK YOU FOR A GREAT

1696
01:06:28,920 --> 01:06:29,480
PRESENTATION.

1697
01:06:29,480 --> 01:06:31,000
I AM GOING TO TOUCH ON A

1698
01:06:31,000 --> 01:06:32,520
QUESTION THAT HAS ALREADY BEEN

1699
01:06:32,520 --> 01:06:33,960
BROUGHT UP BEFORE, BUT I

1700
01:06:33,960 --> 01:06:35,920
WONDERED IF YOU CAN HELP US

1701
01:06:35,920 --> 01:06:40,200
PROVIDE A LITTLE BIT MORE

1702
01:06:40,200 --> 01:06:43,520
SPECIFICITY ON THIS.

1703
01:06:43,520 --> 01:06:47,320
SO, AS YOU PROBABLY KNOW, OUR

1704
01:06:47,320 --> 01:06:48,640
IACC MEETINGS ARE LIVE STREAMED

1705
01:06:48,640 --> 01:06:50,960
AND RECORDED AND ARE AVAILABLE

1706
01:06:50,960 --> 01:06:53,360
TO THE PUBLIC.

1707
01:06:53,360 --> 01:06:57,720
AND I ALWAYS FEEL LIKE EVEN

1708
01:06:57,720 --> 01:06:58,960
THOUGH THOSE ON THE COMMITTEE

1709
01:06:58,960 --> 01:07:00,760
HAVE A LOT OF FAMILIARITY WITH

1710
01:07:00,760 --> 01:07:04,640
AUTISM AND AUTISM RESEARCH AND

1711
01:07:04,640 --> 01:07:06,040
TERMINOLOGY, AND BEING ABLE TO

1712
01:07:06,040 --> 01:07:09,200
KIND OF HAVE AN UNDERSTANDING

1713
01:07:09,200 --> 01:07:12,880
HOW THESE THINGS WORK, EYE ALSO

1714
01:07:12,880 --> 01:07:14,880
RECOGNIZE A VAST MAJORITY OF THE

1715
01:07:14,880 --> 01:07:18,520
AUTISM COMMUNITY WHO MAY NOT BE

1716
01:07:18,520 --> 01:07:19,560
AS FAMILIAR WITH UNDERSTANDING

1717
01:07:19,560 --> 01:07:24,280
HOW WE COME UP WITH CRITERIA FOR

1718
01:07:24,280 --> 01:07:24,560
RESEARCH.

1719
01:07:24,560 --> 01:07:26,560
SO, MY QUESTION IS TO YOU LIKE

1720
01:07:26,560 --> 01:07:28,200
HYPOTHETICALLY, IF I WERE A

1721
01:07:28,200 --> 01:07:30,520
PERSON WHO WAS JUST A FAMILY

1722
01:07:30,520 --> 01:07:34,680
MEMBER OR SOMEONE NOT TOO

1723
01:07:34,680 --> 01:07:38,040
FAMILIAR WITH HOW AUTISM

1724
01:07:38,040 --> 01:07:42,440
RESEARCH AND CRITERIA WORK, IF

1725
01:07:42,440 --> 01:07:45,720
YOU CAN EXPLAIN OR SIMPLY IN

1726
01:07:45,720 --> 01:07:50,200
SIMPLE TERMS HOW ARE THE

1727
01:07:50,200 --> 01:07:53,520
SURVEILLANCE AREAS AND SPECIFIC

1728
01:07:53,520 --> 01:07:54,520
STATES HAVE BEEN HISTORICALLY

1729
01:07:54,520 --> 01:07:57,880
SELECTED FOR WHEN YOU DO

1730
01:07:57,880 --> 01:07:59,960
PREVALENCE RATES, AND ALSO IN

1731
01:07:59,960 --> 01:08:01,720
CAPACITY FOR THE LONG-TERM PLAN.

1732
01:08:01,720 --> 01:08:05,360
IS THERE A LONG-TERM PLAN IN

1733
01:08:05,360 --> 01:08:07,640
PLACE TO EXPAND THE BANDWIDTH

1734
01:08:07,640 --> 01:08:09,040
AND EXPAND THE NUMBER OF STATES

1735
01:08:09,040 --> 01:08:13,240
AND SITES WHERE YOU DO THESE

1736
01:08:13,240 --> 01:08:15,960
STUDIES, AND WHAT ARE THE

1737
01:08:15,960 --> 01:08:17,160
SPECIFIC CRITERIA FOR SELECTING

1738
01:08:17,160 --> 01:08:19,440
WHICH SITES YOU'RE GOING TO USE?

1739
01:08:19,440 --> 01:08:24,040
>>YEAH, IT'S A VERY GOOD

1740
01:08:24,040 --> 01:08:24,360
QUESTION.

1741
01:08:24,360 --> 01:08:25,920
AND THIS -- IF WE'RE, YOU KNOW,

1742
01:08:25,920 --> 01:08:27,680
TALKING ABOUT THE NUTS AND BOLTS

1743
01:08:27,680 --> 01:08:29,760
OF HOW THIS WORKS IT'S WORTH

1744
01:08:29,760 --> 01:08:31,800
POINTING OUT THIS ISN'T EVEN

1745
01:08:31,800 --> 01:08:32,720
RESEARCH, PUBLIC HEALTH

1746
01:08:32,720 --> 01:08:34,200
SURVEILLANCE IS A DIFFERENT KIND

1747
01:08:34,200 --> 01:08:36,080
OF ACTIVITY THAT HAS SPECIAL

1748
01:08:36,080 --> 01:08:37,400
PROVISIONS UNDER LIKE THE HEALTH

1749
01:08:37,400 --> 01:08:40,240
CODE FOR, YOU KNOW, WORKING WITH

1750
01:08:40,240 --> 01:08:43,640
SENSITIVE DATA.

1751
01:08:43,640 --> 01:08:46,040
AND THE PROCESS FOR SOMEONE TO

1752
01:08:46,040 --> 01:08:49,880
BE A SITE IS IT'S A COMPETITIVE

1753
01:08:49,880 --> 01:08:52,680
PROCESS, E C PUTS OUT FUNDING

1754
01:08:52,680 --> 01:08:53,920
ANNOUNCEMENTS THAT PUBLIC HEALTH

1755
01:08:53,920 --> 01:08:56,640
AUTHORITIES CAN APPLY TO IN OUR

1756
01:08:56,640 --> 01:08:59,080
CASE IT'S OFTEN PEOPLE AT EITHER

1757
01:08:59,080 --> 01:09:00,560
HEALTH DEPARTMENTS OR

1758
01:09:00,560 --> 01:09:02,760
UNIVERSITIES THAT ARE WORKING ON

1759
01:09:02,760 --> 01:09:06,040
BEHALF OF THE HEALTH DEPARTMENT

1760
01:09:06,040 --> 01:09:08,120
TO AUGMENT THEIR CAPACITY TO DO

1761
01:09:08,120 --> 01:09:10,960
THIS ACTIVITY.

1762
01:09:10,960 --> 01:09:12,280
AND IT'S COMPETITIVE.

1763
01:09:12,280 --> 01:09:15,120
THEY CREATE A PROPOSAL THAT

1764
01:09:15,120 --> 01:09:17,000
DESCRIBES WHAT THEIR GEOGRAPHIC

1765
01:09:17,000 --> 01:09:19,480
COVERAGE IS, WHY THEY THINK THEY

1766
01:09:19,480 --> 01:09:25,520
WOULD BE SUCCESSFUL IN DOING IT,

1767
01:09:25,520 --> 01:09:26,080
THEIR EXPERIENCE, CAPACITY,

1768
01:09:26,080 --> 01:09:30,560
RELATIONSHIPS THEY HAVE IN THE

1769
01:09:30,560 --> 01:09:31,120
COMMUNITY.

1770
01:09:31,120 --> 01:09:32,440
ESPECIALLY WITH PLACES THAT

1771
01:09:32,440 --> 01:09:35,280
SERVE CHILDREN WITH

1772
01:09:35,280 --> 01:09:37,920
DISABILITIES, AND THEY -- LIKE

1773
01:09:37,920 --> 01:09:41,480
THAT APPLICATION IS THEN JUDGED

1774
01:09:41,480 --> 01:09:43,560
BY A SET OF INDEPENDENT

1775
01:09:43,560 --> 01:09:45,800
REVIEWERS, SO IT'S NO ONE ON OUR

1776
01:09:45,800 --> 01:09:48,480
TEAM THAT REVIEWS AND SCORES THE

1777
01:09:48,480 --> 01:09:49,760
APPLICATIONS.

1778
01:09:49,760 --> 01:09:51,040
IT'S AN OBJECTIVE REVIEW PANEL

1779
01:09:51,040 --> 01:09:52,760
WITHIN CDC.

1780
01:09:52,760 --> 01:09:54,200
SO PEOPLE THAT KNOW A LOT ABOUT

1781
01:09:54,200 --> 01:09:55,920
PUBLIC HEALTH AND DOING THIS

1782
01:09:55,920 --> 01:09:59,320
KIND OF WORK BUT NOT DIRECTLY ON

1783
01:09:59,320 --> 01:10:00,920
OUR TEAM.

1784
01:10:00,920 --> 01:10:04,360
THEY SCORE THE APPLICATIONS, AND

1785
01:10:04,360 --> 01:10:05,520
THEN WE GENERALLY GO DOWN THE

1786
01:10:05,520 --> 01:10:08,440
LINE UNTIL WE RUN OUT OF

1787
01:10:08,440 --> 01:10:10,960
RESOURCES TO FUND THEM.

1788
01:10:10,960 --> 01:10:18,080
IN TERMS OF PLANS FOR EXPANSION,

1789
01:10:18,080 --> 01:10:19,920
THERE WAS AN INCREASE IN THE

1790
01:10:19,920 --> 01:10:22,240
PRESIDENT'S BUDGET SIGNED IN

1791
01:10:22,240 --> 01:10:24,080
JANUARY THAT IS AFFORDING ADDM

1792
01:10:24,080 --> 01:10:25,800
TO EXPAND AND ADD ADDITIONAL

1793
01:10:25,800 --> 01:10:27,240
SITES, SORT OF IN THE SAME

1794
01:10:27,240 --> 01:10:29,840
CAPACITY THAT WE HAVE THE

1795
01:10:29,840 --> 01:10:33,920
CURRENT ONES, AND SO OUR PLAN,

1796
01:10:33,920 --> 01:10:35,720
WE'VE BEEN SCURRYING SINCE WE

1797
01:10:35,720 --> 01:10:36,720
REALIZED WE HAD ADDITIONAL

1798
01:10:36,720 --> 01:10:40,320
RESOURCES TO MAKE THAT HAPPEN,

1799
01:10:40,320 --> 01:10:41,560
AND SO THE TEAM HAS BEEN

1800
01:10:41,560 --> 01:10:42,640
EFFICIENT, THERE'S LOTS OF

1801
01:10:42,640 --> 01:10:44,360
LAYERS WITHIN GOVERNMENT OF THAT

1802
01:10:44,360 --> 01:10:47,240
WORKING THROUGH TO WHERE IT GETS

1803
01:10:47,240 --> 01:10:49,760
OUT INTO THE WORLD.

1804
01:10:49,760 --> 01:10:51,800
BUT THE TEAM HERE HAS BEEN

1805
01:10:51,800 --> 01:10:53,040
INCREDIBLY ON TOP OF IT.

1806
01:10:53,040 --> 01:10:55,520
SO I THINK IN THE COMING DAYS

1807
01:10:55,520 --> 01:10:57,440
WE'LL HAVE SOMETHING TO SAY

1808
01:10:57,440 --> 01:11:00,560
ABOUT THE ADDITION OF SITES AS

1809
01:11:00,560 --> 01:11:00,760
WELL.

1810
01:11:00,760 --> 01:11:02,120
>>GREAT.

1811
01:11:02,120 --> 01:11:05,400
THANK YOU SO MUCH.

1812
01:11:05,400 --> 01:11:05,680
>>THANKS.

1813
01:11:05,680 --> 01:11:06,280
>>OKAY.

1814
01:11:06,280 --> 01:11:06,560
THANK YOU.

1815
01:11:06,560 --> 01:11:08,920
I THINK WE HAVE TIME FOR ONE,

1816
01:11:08,920 --> 01:11:10,560
MAYBE TWO QUESTIONS.

1817
01:11:10,560 --> 01:11:11,240
AMANDA, YOU'RE NEXT.

1818
01:11:11,240 --> 01:11:13,560
>>I'M GOING TO GO FAST.

1819
01:11:13,560 --> 01:11:14,640
THANK YOU.

1820
01:11:14,640 --> 01:11:15,720
I'M ALSO ECHOING ANOTHER REMARK.

1821
01:11:15,720 --> 01:11:18,640
I KNOW YOU DIDN'T CHOOSE THE

1822
01:11:18,640 --> 01:11:19,000
WORD "PROFOUND."

1823
01:11:19,000 --> 01:11:21,400
I HAVE A HISTORY OF WORKING WITH

1824
01:11:21,400 --> 01:11:22,320
PEOPLE WITH DEVELOPMENT

1825
01:11:22,320 --> 01:11:24,040
DISABILITY, THAT'S A LOADED

1826
01:11:24,040 --> 01:11:24,280
TERM.

1827
01:11:24,280 --> 01:11:25,560
IF THERE'S ANYTHING WE'VE

1828
01:11:25,560 --> 01:11:27,120
LEARNED ABOUT PEOPLE WITH

1829
01:11:27,120 --> 01:11:30,080
NEURODIVERSITY IT'S THAT JUDGING

1830
01:11:30,080 --> 01:11:33,440
IS USUALLY -- ITS CREATES

1831
01:11:33,440 --> 01:11:34,800
COGNITIVE SCHEMA, CAN BE

1832
01:11:34,800 --> 01:11:35,480
PROBLEMATIC.

1833
01:11:35,480 --> 01:11:40,360
I KNOW A YOUNG MAN IS NOT

1834
01:11:40,360 --> 01:11:41,440
VERBAL, CONSIDERED THE TERM LOW

1835
01:11:41,440 --> 01:11:42,240
FUNCTIONING UNTIL THEY FIGURED

1836
01:11:42,240 --> 01:11:43,960
OUT HE CAN READ AND HAS

1837
01:11:43,960 --> 01:11:45,920
EXTENSIVE KNOWLEDGE OF THE

1838
01:11:45,920 --> 01:11:47,040
POLITICAL SITUATION IN THE

1839
01:11:47,040 --> 01:11:48,240
UNITED STATES WHICH REALLY MAKES

1840
01:11:48,240 --> 01:11:50,200
HIM A GENIUS, IN MY BOOK.

1841
01:11:50,200 --> 01:11:52,080
SO I THINK I JUST THINK WE HAVE

1842
01:11:52,080 --> 01:11:53,520
TO BE SO GUARDED BECAUSE WHEN

1843
01:11:53,520 --> 01:11:57,000
YOU USE WORDS LIKE THAT IT PUTS

1844
01:11:57,000 --> 01:11:58,320
PEOPLE IN COMPARTMENTS THAT

1845
01:11:58,320 --> 01:11:59,320
INFLUENCE HOW PEOPLE TEACH AND

1846
01:11:59,320 --> 01:11:59,840
TREAT THEM.

1847
01:11:59,840 --> 01:12:01,080
AND IT'S A BIG PROBLEM.

1848
01:12:01,080 --> 01:12:02,720
THE OTHER THING IS BECAUSE I

1849
01:12:02,720 --> 01:12:04,240
WORK FOR OFFICE OF HEAD START, I

1850
01:12:04,240 --> 01:12:07,040
KNOW THE DATA CAN NEVER BE

1851
01:12:07,040 --> 01:12:10,120
TOTALLY UP TO DATE, WE'RE SEEING

1852
01:12:10,120 --> 01:12:11,800
CONCERNING THINGS FOR FAMILIES

1853
01:12:11,800 --> 01:12:12,680
ESPECIALLY WITH LOWER RESOURCES

1854
01:12:12,680 --> 01:12:16,600
IN TERMS OF STATES BACKING AWAY

1855
01:12:16,600 --> 01:12:19,640
AND DISTRICTS BACKING AWAY FROM

1856
01:12:19,640 --> 01:12:20,240
MULTI-DISCIPLINARY EVALUATION,

1857
01:12:20,240 --> 01:12:21,760
MORE KIDS GETTING DIAGNOSED WITH

1858
01:12:21,760 --> 01:12:23,360
SPEECH AND LANGUAGE WITHOUT A

1859
01:12:23,360 --> 01:12:25,000
COMPREHENSIVE LOOK AT HOW THEY

1860
01:12:25,000 --> 01:12:26,560
ARE DOING.

1861
01:12:26,560 --> 01:12:28,200
WE'VE HEARD OF DISTRICTS

1862
01:12:28,200 --> 01:12:30,240
ASSIGNING CHILDREN TO GAP TIME

1863
01:12:30,240 --> 01:12:32,360
BETWEEN PART C AND PART B, LIKE

1864
01:12:32,360 --> 01:12:35,640
A GAP YEAR BEFORE YOU GO COLLEGE

1865
01:12:35,640 --> 01:12:40,040
SO KIDS STILL ELIGIBLE UNDER IDA

1866
01:12:40,040 --> 01:12:42,880
ARE NOT GETTING SERVICES, NOT

1867
01:12:42,880 --> 01:12:44,280
FAMILIES WITH ACCESS TO LEGAL

1868
01:12:44,280 --> 01:12:44,880
REPRESENTATION, TEND TO BE LOW

1869
01:12:44,880 --> 01:12:45,880
INCOME FAMILIES.

1870
01:12:45,880 --> 01:12:47,440
WE KNOW OF ANOTHER STATE WHERE

1871
01:12:47,440 --> 01:12:49,320
THEY DON'T HAVE ENOUGH SPEECH

1872
01:12:49,320 --> 01:12:50,400
AND LANGUAGE THERAPISTS SO

1873
01:12:50,400 --> 01:12:53,120
CHILDREN ARE ONLY GETTING SPEECH

1874
01:12:53,120 --> 01:12:54,480
AND LANGUAGE AS 4-YEAR-OLDS, NOT

1875
01:12:54,480 --> 01:12:55,320
AS 3-YEAR-OLDS.

1876
01:12:55,320 --> 01:12:57,640
I WAS SURPRISED AND GLAD TO SEE

1877
01:12:57,640 --> 01:13:01,400
SOME OF THE DATA LOOKS LIKE SOME

1878
01:13:01,400 --> 01:13:03,600
OF THE EQUITY PROBLEMS MAY HAVE

1879
01:13:03,600 --> 01:13:05,400
DIMINISHED BUT I THINK THEY MAY

1880
01:13:05,400 --> 01:13:06,800
HAVE GOTTEN WORSE AGAIN DURING

1881
01:13:06,800 --> 01:13:07,720
THE PANDEMIC.

1882
01:13:07,720 --> 01:13:10,640
SO WE'RE GOING TO HAVE TO REALLY

1883
01:13:10,640 --> 01:13:12,960
CONSIDER THAT WHEN WE KNOW SO

1884
01:13:12,960 --> 01:13:15,480
MUCH ABOUT HOW MUCH EARLY

1885
01:13:15,480 --> 01:13:17,240
IDENTIFICATION AND EARLY

1886
01:13:17,240 --> 01:13:17,880
INTERVENTION MATTERS WITH

1887
01:13:17,880 --> 01:13:18,240
AUTISM.

1888
01:13:18,240 --> 01:13:21,160
SO, AGAIN, THANKS FOR YOUR WORK.

1889
01:13:21,160 --> 01:13:21,600
IT'S PROVOCATIVE.

1890
01:13:21,600 --> 01:13:25,400
THAT'S VALUABLE AND I APPRECIATE

1891
01:13:25,400 --> 01:13:26,120
THE CHANCE TO SPEAK.

1892
01:13:26,120 --> 01:13:29,240
>>THANK YOU FOR YOUR
COMMENT.

1893
01:13:29,240 --> 01:13:29,800
>>THANK YOU.

1894
01:13:29,800 --> 01:13:34,080
JENNY, WE'LL GIVE YOU THE LAST

1895
01:13:34,080 --> 01:13:34,800
QUESTION/COMMENT FOR THE DAY.

1896
01:13:34,800 --> 01:13:36,920
>>THANK YOU FOR BEING
HERE AND

1897
01:13:36,920 --> 01:13:37,920
FOR YOUR PRESENTATION.

1898
01:13:37,920 --> 01:13:39,400
I WILL BE BRIEF.

1899
01:13:39,400 --> 01:13:41,640
I COULDN'T HELP BUT NOTICE THAT

1900
01:13:41,640 --> 01:13:44,600
FIGURE THAT YOU PUT UP THAT

1901
01:13:44,600 --> 01:13:46,880
SHOWED THE PREVALENCE RATE, AND

1902
01:13:46,880 --> 01:13:48,880
BROKEN BY THE DIFFERENT RACIAL

1903
01:13:48,880 --> 01:13:51,360
GROUPS, THAT ASIAN AND PACIFIC

1904
01:13:51,360 --> 01:13:54,880
ISLANDER GROUP HAD SUCH WIDE

1905
01:13:54,880 --> 01:13:56,600
ERROR BARS, BARS THAT WERE

1906
01:13:56,600 --> 01:13:59,040
STEMMING FROM THOSE DOTS TO

1907
01:13:59,040 --> 01:14:00,880
SPEAK TO THE PUBLIC AND EXPLAIN.

1908
01:14:00,880 --> 01:14:02,640
COULD YOU TALK MORE ABOUT LIKE

1909
01:14:02,640 --> 01:14:04,600
WHAT THAT MEANS SO THAT THE REST

1910
01:14:04,600 --> 01:14:07,240
OF US CAN UNDERSTAND WHAT THOSE

1911
01:14:07,240 --> 01:14:08,080
ERROR BARS MEAN?

1912
01:14:08,080 --> 01:14:10,720
>>SURE.

1913
01:14:10,720 --> 01:14:13,200
YEAH, SO THOSE ARE 95%

1914
01:14:13,200 --> 01:14:17,640
CONFIDENCE INTERVALS,

1915
01:14:17,640 --> 01:14:18,240
STATISTICAL APPRECIATE,

1916
01:14:18,240 --> 01:14:19,560
PRACTICAL IS HOW PRECISE YOU

1917
01:14:19,560 --> 01:14:23,640
SHEENING  -- THINK THAT ESTIMATE

1918
01:14:23,640 --> 01:14:23,920
IS.

1919
01:14:23,920 --> 01:14:25,040
BIG ERROR BARS MEAN YOU DON'T

1920
01:14:25,040 --> 01:14:28,120
HAVE ENOUGH DATA TO BE CONFIDENT

1921
01:14:28,120 --> 01:14:30,280
THAT THAT IS -- YOU'RE MEASURING

1922
01:14:30,280 --> 01:14:33,720
-- YOU KNOW, IT COULD BE

1923
01:14:33,720 --> 01:14:37,560
REASONABLY WITHIN THAT RANGE.

1924
01:14:37,560 --> 01:14:41,720
AND THE REASON FOR THAT IS JUST

1925
01:14:41,720 --> 01:14:43,680
BECAUSE LOOKING AT THE

1926
01:14:43,680 --> 01:14:45,080
DEMOGRAPHIC COMPOSITION OF THESE

1927
01:14:45,080 --> 01:14:48,960
COMMUNITIES AND COUNTRY AS A

1928
01:14:48,960 --> 01:14:51,120
WHOLE, SMALLER GROUPS HAVE, YOU

1929
01:14:51,120 --> 01:14:53,840
KNOW, FEWER PEOPLE WHICH MEANS

1930
01:14:53,840 --> 01:14:57,280
LESS PRECISE ESTIMATES UNLESS

1931
01:14:57,280 --> 01:15:03,360
THERE WAS DELIBERATE ATTEMPT TO,

1932
01:15:03,360 --> 01:15:04,560
YOU KNOW, OVERREPRESENT THOSE

1933
01:15:04,560 --> 01:15:04,920
GROUPS.

1934
01:15:04,920 --> 01:15:07,520
EVERY DATA POINT IN OUR REPORTS

1935
01:15:07,520 --> 01:15:10,600
AT LEAST NOW FOR THE LAST I

1936
01:15:10,600 --> 01:15:12,680
THINK THREE SURVEILLANCE CYCLES

1937
01:15:12,680 --> 01:15:15,640
WE DO APPLY LIKE A STANDARD FOR

1938
01:15:15,640 --> 01:15:18,400
STATISTICAL PRECISION, AND WE

1939
01:15:18,400 --> 01:15:20,880
JUST BORROWED ONE WIDELY USED BY

1940
01:15:20,880 --> 01:15:23,520
NATIONAL CENTER FOR HEALTH

1941
01:15:23,520 --> 01:15:23,840
STATISTICS.

1942
01:15:23,840 --> 01:15:25,880
EVEN THOUGH THOSE BARS ARE WIDE

1943
01:15:25,880 --> 01:15:27,120
IT'S STILL REASONABLE TO

1944
01:15:27,120 --> 01:15:30,280
INTERPRET IT AS A STABLE

1945
01:15:30,280 --> 01:15:30,640
ESTIMATE.

1946
01:15:30,640 --> 01:15:32,280
WHEN THAT ISN'T THE CASE, YOU'LL

1947
01:15:32,280 --> 01:15:34,000
SEE LIKE A LITTLE SUPPRESSED

1948
01:15:34,000 --> 01:15:37,720
SYMBOL, IF YOU LIKE IN SOME

1949
01:15:37,720 --> 01:15:39,280
TABLES LIKE WITHIN INDIVIDUAL

1950
01:15:39,280 --> 01:15:39,480
SITES.

1951
01:15:39,480 --> 01:15:40,920
SO IT'S JUST A FUNCTION OF LIKE

1952
01:15:40,920 --> 01:15:42,760
HOW MANY PEOPLE ARE IN THAT

1953
01:15:42,760 --> 01:15:45,600
GROUP AND THAT AFFECTS THE

1954
01:15:45,600 --> 01:15:46,240
PRECISION OF THE ESTIMATES.

1955
01:15:46,240 --> 01:15:48,640
>>THANK YOU.

1956
01:15:48,640 --> 01:15:49,560
APPRECIATE THE BREAKDOWN.

1957
01:15:49,560 --> 01:15:50,320
>>THANK YOU.

1958
01:15:50,320 --> 01:15:56,320
I WANT TO SAY THANK YOU SO MUCH

1959
01:15:56,320 --> 01:16:01,160
TO KARYL, MATTHEW, AND KELLY FOR

1960
01:16:01,160 --> 01:16:01,800
THE EXCELLENT PRESENTATION AND

1961
01:16:01,800 --> 01:16:02,800
GREAT DISCUSSION.

1962
01:16:02,800 --> 01:16:05,960
WE'LL TAKE A FIVE MINUTE BREAK,

1963
01:16:05,960 --> 01:16:07,720
COMING BACK AT 11:21 TO START

1964
01:16:07,720 --> 01:16:08,720
THE NEXT SESSION.

1965
01:16:08,720 --> 01:16:09,880
SEE YOU ALL SOON.

1966
01:16:09,880 --> 01:16:16,400
>>WELCOME BACK.

1967
01:16:16,400 --> 01:16:19,920
I'M GOING TO TURN IT OVER TO

1968
01:16:19,920 --> 01:16:21,640
SUSAN DANIELS, NATIONAL AUTISM

1969
01:16:21,640 --> 01:16:24,080
COORDINATOR, FOR THE UPDATE,

1970
01:16:24,080 --> 01:16:26,160
FOLLOWED BY IACC BUSINESS.

1971
01:16:26,160 --> 01:16:26,760
SUSAN?

1972
01:16:26,760 --> 01:16:27,560
>>THANK YOU.

1973
01:16:27,560 --> 01:16:28,640
ALL RIGHT.

1974
01:16:28,640 --> 01:16:31,200
SO, I HAVE THE NATIONAL AUTISM

1975
01:16:31,200 --> 01:16:32,600
COORDINATOR UPDATE, I'M GOING TO

1976
01:16:32,600 --> 01:16:33,440
BE SHARING HIGHLIGHTS FROM

1977
01:16:33,440 --> 01:16:38,520
AROUND THE GOVERNMENT AND AROUND

1978
01:16:38,520 --> 01:16:46,720
THE COMMUNITY. 

1979
01:16:46,720 --> 01:16:48,560
SO FIRST I'M GOING TO SHARE A

1980
01:16:48,560 --> 01:16:50,320
FEW HIGHLIGHTS FROM THE WHITE

1981
01:16:50,320 --> 01:16:58,640
HOUSE AND AUTISM AWARENESS MONTH

1982
01:16:58,640 --> 01:17:00,360
UPDATES.

1983
01:17:00,360 --> 01:17:02,160
FIRST, FROM THE WHITE HOUSE,

1984
01:17:02,160 --> 01:17:03,920
DURING BLACK HISTORY MONTH WHICH

1985
01:17:03,920 --> 01:17:05,680
WAS IN FEBRUARY, THE WHITE HOUSE

1986
01:17:05,680 --> 01:17:09,920
RELEASED A FACT SHEET ON THE

1987
01:17:09,920 --> 01:17:11,600
BIDEN-HARRIS ADMINISTRATION WORK

1988
01:17:11,600 --> 01:17:12,640
TO SUPPORT BLACK DISABLED

1989
01:17:12,640 --> 01:17:14,640
AMERICANS, WE HAVE A LINK ON THE

1990
01:17:14,640 --> 01:17:17,680
SLIDE SO THAT FACT SHEET AND

1991
01:17:17,680 --> 01:17:18,680
THEY NOTED MANY INITIATIVES

1992
01:17:18,680 --> 01:17:19,280
ACROSS THE ENTIRE FEDERAL

1993
01:17:19,280 --> 01:17:21,720
GOVERNMENT WHERE THEY WERE

1994
01:17:21,720 --> 01:17:23,600
WORKING TO HELP BLACK AMERICANS

1995
01:17:23,600 --> 01:17:24,920
AND PEOPLE WITH DISABILITIES

1996
01:17:24,920 --> 01:17:26,240
THRIVE IN THEIR COMMUNITIES AT

1997
01:17:26,240 --> 01:17:29,320
WORK, AT HOME, AT SCHOOL.

1998
01:17:29,320 --> 01:17:32,720
AND THE FACT SHEET COVERS

1999
01:17:32,720 --> 01:17:33,440
EMPLOYMENT, FINANCIAL

2000
01:17:33,440 --> 01:17:35,200
EMPOWERMENT, ACCESS TO

2001
01:17:35,200 --> 01:17:37,040
DISABILITY BEN ITS, EDUCATION,

2002
01:17:37,040 --> 01:17:38,480
HOUSING, FAMILY SUPPORT, HEALTH

2003
01:17:38,480 --> 01:17:38,800
CARE.

2004
01:17:38,800 --> 01:17:44,320
YOU MIGHT WANT TO CHECK OUT THAT

2005
01:17:44,320 --> 01:17:45,200
FACT SHEET.

2006
01:17:45,200 --> 01:17:47,400
NEXT WE HAVE THE WHITE HOUSE,

2007
01:17:47,400 --> 01:17:49,800
PRESIDENT'S PROCLAMATION ON

2008
01:17:49,800 --> 01:17:51,080
WORLD AUTISM AWARENESS DAY,

2009
01:17:51,080 --> 01:17:53,160
2023, WHERE HE RENEWED

2010
01:17:53,160 --> 01:17:54,360
ADMINISTRATION'S COMMITMENT TO

2011
01:17:54,360 --> 01:17:55,200
EQUAL RIGHTS, INCLUSION, AND

2012
01:17:55,200 --> 01:17:58,640
SUPPORT FOR PEOPLE ON THE AUTISM

2013
01:17:58,640 --> 01:17:58,920
SPECTRUM.

2014
01:17:58,920 --> 01:18:00,720
HE TALKED ABOUT WHERE THE

2015
01:18:00,720 --> 01:18:04,640
ADMINISTRATION HAS MADE STRIDES

2016
01:18:04,640 --> 01:18:06,400
INCLUDING HOME AND

2017
01:18:06,400 --> 01:18:08,040
COMMUNITY-BASED SERVICES,

2018
01:18:08,040 --> 01:18:08,960
HOUSING, EMPLOYMENT, EDUCATION,

2019
01:18:08,960 --> 01:18:10,480
SAFETY AND LAW ENFORCEMENT,

2020
01:18:10,480 --> 01:18:13,000
HEALTH CARE, ALSO ON GLOBAL

2021
01:18:13,000 --> 01:18:13,840
HUMAN RIGHTS.

2022
01:18:13,840 --> 01:18:15,600
AND YOU CAN SEE THE PROCLAMATION

2023
01:18:15,600 --> 01:18:23,680
ON THE WHITE HOUSE WEB PAGE,

2024
01:18:23,680 --> 01:18:24,520
WEBSITE.

2025
01:18:24,520 --> 01:18:26,120
WE ALSO HAVE UPDATES ABOUT

2026
01:18:26,120 --> 01:18:27,080
AUTISM AWARENESS MONTH.

2027
01:18:27,080 --> 01:18:30,920
AT THE UNITED NATIONS OVER THE

2028
01:18:30,920 --> 01:18:33,440
WEEKEND U.N. SECRETARY GENERAL

2029
01:18:33,440 --> 01:18:38,760
GUTIERREZ ISSUED A STATEMENT TO

2030
01:18:38,760 --> 01:18:39,720
MARK THE DAY, INCLUSIVE

2031
01:18:39,720 --> 01:18:41,800
ENVIRONMENTS AROUND THE WORLD.

2032
01:18:41,800 --> 01:18:44,760
A SPECIAL EVENT SUNDAY WITH

2033
01:18:44,760 --> 01:18:47,600
GLOBAL VIRTUAL EVENT TEAM,

2034
01:18:47,600 --> 01:18:48,240
TRANSFORMATION TO NEUROINCLUSIVE

2035
01:18:48,240 --> 01:18:49,000
WORLD FOR ALL.

2036
01:18:49,000 --> 01:18:51,080
YOU MAY WANT TO SEE THE VIDEO

2037
01:18:51,080 --> 01:18:55,480
WHICH IS ON THE U.N. WEBSITE.

2038
01:18:55,480 --> 01:19:02,600
WE PROVIDED THE LINKS HERE.

2039
01:19:02,600 --> 01:19:04,920
I WOULD LIKE TO WELCOME AND

2040
01:19:04,920 --> 01:19:07,640
INVITE YOU TO JOIN US IN ABOUT A

2041
01:19:07,640 --> 01:19:10,040
WEEK, A WEEK-AND-A-HALF OR SO,

2042
01:19:10,040 --> 01:19:12,200
ON FRIDAY APRIL 14, FROM 2 TO

2043
01:19:12,200 --> 01:19:14,200
3:00 P.M. EASTERN, OUR OFFICE

2044
01:19:14,200 --> 01:19:16,400
AND THE NIMH ARE GOING TO BE

2045
01:19:16,400 --> 01:19:18,000
HOSTING AN AUTISM AWARENESS

2046
01:19:18,000 --> 01:19:20,000
MONTH SPECIAL EVENT WHICH WILL

2047
01:19:20,000 --> 01:19:27,840
FEATURE INTERVIEWS WITH FOUR

2048
01:19:27,840 --> 01:19:32,800
AUTISTIC ARTISTS, SHEILA

2049
01:19:32,800 --> 01:19:38,160
BENEDIS, RONALDO BYRD, DAVID

2050
01:19:38,160 --> 01:19:39,800
DOWNES AND JEREMY SICILE-KIRA,

2051
01:19:39,800 --> 01:19:43,600
YOU CAN GET A PREVIEW, IT'S FREE

2052
01:19:43,600 --> 01:19:45,960
AND OPEN TO THE PUBLIC,

2053
01:19:45,960 --> 01:19:47,360
AVAILABLE ON NIH VIDEOCAST.

2054
01:19:47,360 --> 01:19:50,200
VISIT THE WEBSITE AND REGISTER

2055
01:19:50,200 --> 01:19:51,080
FOR THAT EVENT.

2056
01:19:51,080 --> 01:19:53,480
ALSO I WANTED TO HIGHLIGHT

2057
01:19:53,480 --> 01:19:55,560
INDIAN HEALTH SERVICES, TWO

2058
01:19:55,560 --> 01:19:58,040
EVENTS FOR AUTISM AWARENESS

2059
01:19:58,040 --> 01:19:58,840
MONTH, AMERICAN INDIAN/ALASKA

2060
01:19:58,840 --> 01:20:00,840
PARENTS OF CHILDREN WITH AUTISM

2061
01:20:00,840 --> 01:20:03,520
PANEL TAKING PLACE ON APRIL 12,

2062
01:20:03,520 --> 01:20:05,440
1:00 P.M. EASTERN.

2063
01:20:05,440 --> 01:20:07,600
AND ALSO ON APRIL 27 THEY WILL

2064
01:20:07,600 --> 01:20:09,480
BE HOSTING THE IMPORTANCE OF

2065
01:20:09,480 --> 01:20:11,240
SCREENING FOR AUTISM SPECTRUM

2066
01:20:11,240 --> 01:20:15,800
DISORDER AND USE OF M-CHAT, WE

2067
01:20:15,800 --> 01:20:21,400
PROVIDED LINKS SO YOU CAN ATTEND

2068
01:20:21,400 --> 01:20:21,600
THOSE.

2069
01:20:21,600 --> 01:20:22,840
IN ADDITION, NATIONAL INSTITUTE

2070
01:20:22,840 --> 01:20:23,520
OF ENVIRONMENTAL HEALTH SCIENCES

2071
01:20:23,520 --> 01:20:26,200
AT THE NIH IS HOSTING ON APRIL

2072
01:20:26,200 --> 01:20:28,400
20 FROM 1 TO 2:00 P.M. EASTERN A

2073
01:20:28,400 --> 01:20:31,240
SPECIAL EVENT FOR WORLD AUTISM

2074
01:20:31,240 --> 01:20:32,320
AWARENESS MONTH, IDENTIFYING

2075
01:20:32,320 --> 01:20:34,760
EARLY BRAIN MARKERS IN INFANCY

2076
01:20:34,760 --> 01:20:36,640
IN AUTISM AND ASSOCIATED

2077
01:20:36,640 --> 01:20:38,840
DEVELOPMENTAL DISABILITIES.

2078
01:20:38,840 --> 01:20:45,440
AND IT WILL FEATURE DR. MARK

2079
01:20:45,440 --> 01:20:46,600
SHEH IN UNIVERSITY OF NORTH

2080
01:20:46,600 --> 01:20:47,320
CAROLINA, CHAPEL HILL, THESE

2081
01:20:47,320 --> 01:20:50,080
SLIDES WILL BE POSTED AFTER THE

2082
01:20:50,080 --> 01:20:50,320
MEETING.

2083
01:20:50,320 --> 01:20:51,960
IN ADDITION IF YOU WANT TO FIND

2084
01:20:51,960 --> 01:20:54,240
OUT MORE ABOUT DIFFERENT THINGS

2085
01:20:54,240 --> 01:20:55,680
HAPPENING AROUND THE COUNTRY AND

2086
01:20:55,680 --> 01:20:58,520
THE WORLD FOR AUTISM AWARENESS

2087
01:20:58,520 --> 01:20:59,480
AND ACCEPTANCE MONTH, PLEASE

2088
01:20:59,480 --> 01:21:04,320
CHECK OUT OUR WEB SITE AND WE'VE

2089
01:21:04,320 --> 01:21:10,360
COMPILED EVENTS AND WILL UPDATE

2090
01:21:10,360 --> 01:21:12,200
THROUGH THE MONTH.

2091
01:21:12,200 --> 01:21:14,080
WE HAVE A NEW NEWSLETTER THAT

2092
01:21:14,080 --> 01:21:17,120
WENT OUT YESTERDAY WHERE WE

2093
01:21:17,120 --> 01:21:18,960
HIGHLIGHT VARIOUS EVENTS AND

2094
01:21:18,960 --> 01:21:21,080
NEWS UPDATES FROM AROUND THE

2095
01:21:21,080 --> 01:21:23,480
COUNTRY AND AROUND THE WORLD.

2096
01:21:23,480 --> 01:21:25,200
SO WELCOME YOU TO SEE THAT.

2097
01:21:25,200 --> 01:21:27,520
IF YOU'D LIKE TO SUBSCRIBE I'VE

2098
01:21:27,520 --> 01:21:29,040
PROVIDED THE LINK TO SUBSCRIBE

2099
01:21:29,040 --> 01:21:30,360
TO THAT NEWSLETTER.

2100
01:21:30,360 --> 01:21:32,680
SO NEXT LET'S TALK ABOUT FEDERAL

2101
01:21:32,680 --> 01:21:33,200
ACTIVITIES.

2102
01:21:33,200 --> 01:21:35,960
I WILL GO THROUGH SOME OF THE

2103
01:21:35,960 --> 01:21:36,720
OTHER FEDERAL ADVISORY

2104
01:21:36,720 --> 01:21:38,520
COMMITTEES THAT WE HAVE IN THE

2105
01:21:38,520 --> 01:21:40,120
GOVERNMENT THAT OVERLAP A LITTLE

2106
01:21:40,120 --> 01:21:43,920
BIT WITH OUR SUBJECT MATTER OF

2107
01:21:43,920 --> 01:21:46,120
DISABILITY IN AUTISM.

2108
01:21:46,120 --> 01:21:47,640
FIRST THE INTERAGENCY COMMITTEE

2109
01:21:47,640 --> 01:21:49,080
ON DISABILITY RESEARCH.

2110
01:21:49,080 --> 01:21:50,840
THIS COMMITTEE HELD A LUNCH AND

2111
01:21:50,840 --> 01:21:53,000
LEARN WEBINAR ON COVID-19 DATA

2112
01:21:53,000 --> 01:21:57,160
ON INDIVIDUALS WITH INTELLECTUAL

2113
01:21:57,160 --> 01:21:59,600
DEVELOPMENTAL DISABILITIES

2114
01:21:59,600 --> 01:22:01,400
RECENTLY.

2115
01:22:01,400 --> 01:22:02,800
THIS FEATURED PEOPLE FROM HHS,

2116
01:22:02,800 --> 01:22:04,760
SO YOU MAY WANT TO CHECK THAT

2117
01:22:04,760 --> 01:22:05,040
OUT.

2118
01:22:05,040 --> 01:22:07,240
THERE'S ALSO A REPORT THEY

2119
01:22:07,240 --> 01:22:08,440
ISSUED IN 2021, AND WE PROVIDED

2120
01:22:08,440 --> 01:22:12,520
THE LINK TO THE REPORT HERE ON

2121
01:22:12,520 --> 01:22:13,720
THE SLIDE TOO.

2122
01:22:13,720 --> 01:22:16,240
WITH THE NATIONAL COUNCIL ON

2123
01:22:16,240 --> 01:22:18,960
DISABILITY, A FRAM AGENCY THAT

2124
01:22:18,960 --> 01:22:20,720
WORKS ON DISABILITY-RELATED

2125
01:22:20,720 --> 01:22:22,360
ISSUES, THEY HELD RECENT

2126
01:22:22,360 --> 01:22:23,240
QUARTERLY BUSINESS MEETING ON

2127
01:22:23,240 --> 01:22:25,440
FEBRUARY 16, AND ISSUED A NOTICE

2128
01:22:25,440 --> 01:22:27,040
OF FUNDING OPPORTUNITY THAT

2129
01:22:27,040 --> 01:22:28,800
CLOSED ON MARCH 22 CALLED THE

2130
01:22:28,800 --> 01:22:30,040
ABSENCE OF PEOPLE WITH

2131
01:22:30,040 --> 01:22:31,560
DISABILITIES IN CLINICAL TRIALS,

2132
01:22:31,560 --> 01:22:32,880
AND I THOUGHT THAT MEMBERS OF

2133
01:22:32,880 --> 01:22:34,760
THE COMMITTEE MIGHT WANT TO KNOW

2134
01:22:34,760 --> 01:22:37,200
THAT WAS OUT.

2135
01:22:37,200 --> 01:22:38,600
AND THE AWARDEE THAT GETS THIS

2136
01:22:38,600 --> 01:22:40,880
GRANT WILL PREPARE A FINAL

2137
01:22:40,880 --> 01:22:42,200
REPORT TO PROVIDE

2138
01:22:42,200 --> 01:22:43,840
RECOMMENDATIONS AND PROMISING

2139
01:22:43,840 --> 01:22:45,480
PRACTICES TO INCREASE INCLUSION

2140
01:22:45,480 --> 01:22:47,560
OF PEOPLE WITH DISABILITIES IN

2141
01:22:47,560 --> 01:22:49,640
CLINICAL TRIALS.

2142
01:22:49,640 --> 01:22:51,280
IN ADDITION, MARCH 23, NATIONAL

2143
01:22:51,280 --> 01:22:53,280
COUNCIL ON DISABILITY ISSUED AN

2144
01:22:53,280 --> 01:22:55,080
UPDATE OF HEALTH EQUITIES

2145
01:22:55,080 --> 01:22:55,680
FRAMEWORK.

2146
01:22:55,680 --> 01:22:59,280
SO THAT INFORMATION IS ALSO

2147
01:22:59,280 --> 01:23:00,480
PROVIDED HERE.

2148
01:23:00,480 --> 01:23:04,400
AND WE HEARD THAT THE NCD IN

2149
01:23:04,400 --> 01:23:05,160
COLLABORATION WITH NATIONAL

2150
01:23:05,160 --> 01:23:06,720
INDIAN COUNCIL ON AGING RECENTLY

2151
01:23:06,720 --> 01:23:11,360
RELEASED A TOOL KIT CALLED

2152
01:23:11,360 --> 01:23:12,320
UNDERSTANDING DISABILITIES IN

2153
01:23:12,320 --> 01:23:14,280
AMERICAN INDIAN AND ALASKA

2154
01:23:14,280 --> 01:23:15,680
NATIVE COMMUNITIES, SHARING

2155
01:23:15,680 --> 01:23:17,040
RESOURCES AND RECOMMENDATIONS ON

2156
01:23:17,040 --> 01:23:19,000
DISABILITY SERVICES AND

2157
01:23:19,000 --> 01:23:20,520
PROTECTIONS FOR TRIBAL NATIONS.

2158
01:23:20,520 --> 01:23:24,480
AND THAT IS AVAILABLE ON THE

2159
01:23:24,480 --> 01:23:26,440
IACC WEBSITE AS WELL.

2160
01:23:26,440 --> 01:23:27,280
THE FEDERAL PARTNERS IN

2161
01:23:27,280 --> 01:23:29,720
TRANSITION IS A FEDERAL WORKING

2162
01:23:29,720 --> 01:23:32,320
GROUP THAT WORKS ON YOUTH WITH

2163
01:23:32,320 --> 01:23:34,400
DISABILITIES, AND THEY JUST HELD

2164
01:23:34,400 --> 01:23:35,640
THEIR GENERAL COMMITTEE MEETING

2165
01:23:35,640 --> 01:23:37,160
IN MARCH, MARCH 16, THEY ARE

2166
01:23:37,160 --> 01:23:40,000
CONTINUING TO WORK ON THEIR NEW

2167
01:23:40,000 --> 01:23:40,760
FEDERAL YOUTH TRANSITION PLAN,

2168
01:23:40,760 --> 01:23:42,840
SO WE WILL KEEP YOU UPDATED ON

2169
01:23:42,840 --> 01:23:49,160
THE PROGRESS OF THAT PLAN.

2170
01:23:49,160 --> 01:23:50,120
SAMHSA'S INTERDEPARTMENTAL

2171
01:23:50,120 --> 01:23:54,160
SERIOUS MENTAL ILLNESS

2172
01:23:54,160 --> 01:23:56,560
COORDINATING COMMITTEE WHICH

2173
01:23:56,560 --> 01:23:58,960
SOMETIMES OVERLAP WITH AUTISM,

2174
01:23:58,960 --> 01:24:00,760
AS CO-OCCURRING CONDITION, THEIR

2175
01:24:00,760 --> 01:24:01,720
RECENT ACTIVITIES INCLUDE

2176
01:24:01,720 --> 01:24:04,120
MEETING THAT HAPPENED ON MARCH

2177
01:24:04,120 --> 01:24:07,160
14, AND THEY HAD A PRESENTATION

2178
01:24:07,160 --> 01:24:08,160
FROM BRANDON STAGLAND, PRESIDENT

2179
01:24:08,160 --> 01:24:11,360
OF ONE MIND, ONE MIND

2180
01:24:11,360 --> 01:24:12,760
INITIATIVE, SOCIAL INNOVATION

2181
01:24:12,760 --> 01:24:13,880
FOR BETTER MENTAL HEALTH.

2182
01:24:13,880 --> 01:24:18,800
AND THE FULL AGENDA AND LINK ARE

2183
01:24:18,800 --> 01:24:20,640
HERE ON THIS SLIDE.

2184
01:24:20,640 --> 01:24:23,040
I WOULD ALSO LIKE TO DRAW YOUR

2185
01:24:23,040 --> 01:24:25,920
ATTENTION TO AN UPCOMING

2186
01:24:25,920 --> 01:24:27,480
WORKSHOP OF THE NIH, NATIONAL

2187
01:24:27,480 --> 01:24:29,520
INSTITUTE OF CHILD HEALTH AND

2188
01:24:29,520 --> 01:24:31,040
HUMAN DEVELOPMENT, ABLEISM IN

2189
01:24:31,040 --> 01:24:32,480
MEDICINE AND CLINICAL RESEARCH

2190
01:24:32,480 --> 01:24:33,520
WORKSHOP.

2191
01:24:33,520 --> 01:24:36,640
THIS WILL BE TAKING PLACE LATER

2192
01:24:36,640 --> 01:24:37,600
THIS MONTH, APRIL 27-28, AND

2193
01:24:37,600 --> 01:24:40,240
WILL BE A TWO-DAY MEETING ON

2194
01:24:40,240 --> 01:24:42,760
ABLEISM IN CLINICAL CARE AND

2195
01:24:42,760 --> 01:24:43,880
BIOMEDICAL AND BEHAVIORAL

2196
01:24:43,880 --> 01:24:44,360
RESEARCH.

2197
01:24:44,360 --> 01:24:47,680
AND YOU'RE WELCOME TO REGISTER

2198
01:24:47,680 --> 01:24:49,560
FOR THAT EVENT, AND I'M SURE

2199
01:24:49,560 --> 01:24:52,720
THAT SEVERAL OF YOU WILL WANT TO

2200
01:24:52,720 --> 01:24:53,800
ATTEND THAT.

2201
01:24:53,800 --> 01:24:56,760
IT'S FREE, AND OPEN TO THE

2202
01:24:56,760 --> 01:24:57,000
PUBLIC.

2203
01:24:57,000 --> 01:24:57,960
AND SOME ADDITIONAL COMMITTEES

2204
01:24:57,960 --> 01:24:59,280
THAT I'VE LISTED HERE DIDN'T

2205
01:24:59,280 --> 01:25:01,040
HAVE NEW UPDATES BUT WANTED YOU

2206
01:25:01,040 --> 01:25:05,640
TO KNOW WE DID CHECK.

2207
01:25:05,640 --> 01:25:10,760
RAISE FAMILY CARE GIVING

2208
01:25:10,760 --> 01:25:11,880
ADVISORY COMMITTEE, DISABILITY

2209
01:25:11,880 --> 01:25:13,720
ADVISORY COMMITTEE, PRESIDENT'S

2210
01:25:13,720 --> 01:25:16,000
COMMITTEE AND NATIONAL ADVISORY

2211
01:25:16,000 --> 01:25:16,680
COMMITTEE DIDN'T HAVE UPDATES AT

2212
01:25:16,680 --> 01:25:18,760
THE TIME WE PUT THESE SLIDES

2213
01:25:18,760 --> 01:25:24,120
TOGETHER, BUT I THINK THE DAC

2214
01:25:24,120 --> 01:25:25,400
ANNOUNCED A NEW MEETING, WE'LL

2215
01:25:25,400 --> 01:25:27,520
PROVIDE THAT UPDATE FOR YOU,

2216
01:25:27,520 --> 01:25:30,040
PROBABLY WILL UPDATE THE SLIDES

2217
01:25:30,040 --> 01:25:33,080
BEFORE WE POST THEM.

2218
01:25:33,080 --> 01:25:36,040
AND IN ADDITION I JUST HAVE A

2219
01:25:36,040 --> 01:25:36,920
FEW NON-GOVERNMENTAL ACTIVITIES

2220
01:25:36,920 --> 01:25:40,200
I WANTED TO POINT OUT FOR YOU.

2221
01:25:40,200 --> 01:25:42,920
ONE, THAT ON MARCH 30, 2023,

2222
01:25:42,920 --> 01:25:44,320
AUTISM SCIENCE FOUNDATION HELD

2223
01:25:44,320 --> 01:25:46,440
ITS ANNUAL DAY OF LEARNING THAT

2224
01:25:46,440 --> 01:25:48,160
FEATURED TALKS BY RESEARCHERS

2225
01:25:48,160 --> 01:25:50,720
AND CLINICIANS ABOUT TOPICS IN

2226
01:25:50,720 --> 01:25:52,680
AUTISM RESEARCH, AND THE EVENT

2227
01:25:52,680 --> 01:25:53,960
VIDEOS AND INFORMATION ABOUT THE

2228
01:25:53,960 --> 01:25:58,640
EVENT CAN BE FOUND ON THEIR

2229
01:25:58,640 --> 01:25:59,640
EVENT PAGE.

2230
01:25:59,640 --> 01:26:02,520
IN ADDITION, THE KENNEDY KRIEGER

2231
01:26:02,520 --> 01:26:04,400
RESEARCH INSTITUTE HELD A

2232
01:26:04,400 --> 01:26:05,400
CONFERENCE CALLED NEURODIVERSITY

2233
01:26:05,400 --> 01:26:09,080
IN THE WORKPLACE, AND THEY

2234
01:26:09,080 --> 01:26:09,680
BROUGHT TOGETHER EMPLOYERS,

2235
01:26:09,680 --> 01:26:10,480
STAKEHOLDERS, POLICYMAKERS

2236
01:26:10,480 --> 01:26:11,400
COMMITTED TO IMPROVING

2237
01:26:11,400 --> 01:26:14,040
EMPLOYMENT OUTCOMES FOR THE

2238
01:26:14,040 --> 01:26:14,680
NEURODIVERSE WORKFORCE, AND MORE

2239
01:26:14,680 --> 01:26:18,640
INFORMATION CAN BE FOUND ON

2240
01:26:18,640 --> 01:26:21,480
THEIR WEBSITE.

2241
01:26:21,480 --> 01:26:23,440
 

2242
01:26:23,440 --> 01:26:24,640
ALSO, THE DREXEL RESEARCH

2243
01:26:24,640 --> 01:26:29,680
INSTITUTE ISSUED A NEW REPORT,

2244
01:26:29,680 --> 01:26:31,440
NATIONAL AUTISM INDICATOR'S

2245
01:26:31,440 --> 01:26:32,440
REPORT, EXPLORING INDIVIDUALS'

2246
01:26:32,440 --> 01:26:34,960
USE OF MEDICAID ACROSS THE

2247
01:26:34,960 --> 01:26:35,960
LIFESPAN, INTRODUCTION TO

2248
01:26:35,960 --> 01:26:38,040
MEDICAID AND AUTISM, AND IT IS

2249
01:26:38,040 --> 01:26:40,920
THE FIRST REPORT IN THE AUTISM

2250
01:26:40,920 --> 01:26:42,760
INSTITUTE POLICY INSIGHT SERIES.

2251
01:26:42,760 --> 01:26:44,640
AND YOU CAN FIND THAT

2252
01:26:44,640 --> 01:26:45,400
INFORMATION ON THEIR WEBSITE,

2253
01:26:45,400 --> 01:26:49,880
AND THEY HAVE A VERY NICE

2254
01:26:49,880 --> 01:26:51,720
EDITION TO READ, LIKE AN

2255
01:26:51,720 --> 01:26:55,800
EASY-READ EDITION WITH A LOT OF

2256
01:26:55,800 --> 01:26:56,320
GRAPHICS.

2257
01:26:56,320 --> 01:27:00,160
I THINK THIS IS MY FINAL UPDATE,

2258
01:27:00,160 --> 01:27:01,600
THE INTERNATIONAL SOCIETY FOR

2259
01:27:01,600 --> 01:27:03,000
AUTISM RESEARCH HOLDING ITS

2260
01:27:03,000 --> 01:27:06,760
ANNUAL MEETING IN STOCKHOLM,

2261
01:27:06,760 --> 01:27:08,960
SWEDEN, FROM MAY 3-6, THEY WILL

2262
01:27:08,960 --> 01:27:10,800
BE SHARING NEW SCIENTIFIC

2263
01:27:10,800 --> 01:27:13,000
PROGRESS AND FINDINGS FROM

2264
01:27:13,000 --> 01:27:14,480
SCIENTISTS ACROSS THE WORLD, AND

2265
01:27:14,480 --> 01:27:16,680
SO INFORMATION FOR THAT AND THE

2266
01:27:16,680 --> 01:27:20,200
REG  -- REGISTRATION IS ON THEIR

2267
01:27:20,200 --> 01:27:21,640
WEB PAGE, HOPE MANY OF YOU WILL

2268
01:27:21,640 --> 01:27:26,440
BE ABLE TO TEND  -- ATTEND THAT.

2269
01:27:26,440 --> 01:27:27,640
I CONCLUSION THE UPDATE.

2270
01:27:27,640 --> 01:27:31,560
ARE THERE ANY QUESTIONS THAT

2271
01:27:31,560 --> 01:27:34,520
ANYONE HAS FOR ME?

2272
01:27:34,520 --> 01:27:40,520
 

2273
01:27:40,520 --> 01:27:42,880
ALL RIGHT. 

2274
01:27:42,880 --> 01:27:46,680
I'M NOT SEEING ANY.

2275
01:27:46,680 --> 01:27:50,880
AND SO I WILL TRANSITION US THEN

2276
01:27:50,880 --> 01:27:53,880
TO COMMITTEE BUSINESS.

2277
01:27:53,880 --> 01:27:57,400
SO, WE HAVE SOME ITEMS FOR

2278
01:27:57,400 --> 01:28:00,560
COMMITTEE BUSINESS TO DISCUSS

2279
01:28:00,560 --> 01:28:02,520
TODAY WITH THE IACC INCLUDING

2280
01:28:02,520 --> 01:28:04,520
IACC STRATEGIC PLAN, I'LL UPDATE

2281
01:28:04,520 --> 01:28:07,240
YOU ON THE STATUS OF THAT.

2282
01:28:07,240 --> 01:28:08,560
HEALTH OUTCOMES WORKING GROUP

2283
01:28:08,560 --> 01:28:10,400
REPORT THAT I MENTIONED LAST

2284
01:28:10,400 --> 01:28:14,600
TIME, AND SOME UPDATES ABOUT THE

2285
01:28:14,600 --> 01:28:20,680
IACC SUMMARY OF ADVANCES.

2286
01:28:20,680 --> 01:28:22,440
SO, THE 2021-2023 IACC STRATEGIC

2287
01:28:22,440 --> 01:28:24,960
PLAN THAT THIS COMMITTEE

2288
01:28:24,960 --> 01:28:27,160
APPROVED IN JANUARY IS IN THE

2289
01:28:27,160 --> 01:28:28,360
PROCESS OF BEING PUBLISHED,

2290
01:28:28,360 --> 01:28:31,440
EXPECTED TO BE PUBLISHED IN MAY.

2291
01:28:31,440 --> 01:28:34,080
SO, THE COMMITTEE VOTED TO

2292
01:28:34,080 --> 01:28:36,480
APPROVE IT, AND WE ARE WORKING

2293
01:28:36,480 --> 01:28:38,400
ON THAT PUBLICATION, AND AFTER

2294
01:28:38,400 --> 01:28:40,080
IT IS PUBLISHED WE WILL ALSO

2295
01:28:40,080 --> 01:28:41,960
TRANSMITTED TO CONGRESS AND THE

2296
01:28:41,960 --> 01:28:45,120
PRESIDENT AS REQUIRED BY THE

2297
01:28:45,120 --> 01:28:49,920
AUTISM CARES ACT OF 2019. 

2298
01:28:49,920 --> 01:28:51,120
WE'VE PREPARED AN EASY-TO-READ

2299
01:28:51,120 --> 01:28:55,400
VERSION RELEASED AT THE SAME

2300
01:28:55,400 --> 01:28:56,680
TIME. 

2301
01:28:56,680 --> 01:28:58,320
FOR THE HEALTH OUTCOMES WORKING

2302
01:28:58,320 --> 01:29:01,080
GROUP REPORT, THIS IS THE REPORT

2303
01:29:01,080 --> 01:29:02,080
THAT THE COMMITTEE WAS WORKING

2304
01:29:02,080 --> 01:29:05,520
ON IN THE LAST ITERATION ON

2305
01:29:05,520 --> 01:29:06,960
CO-OCCURRING CONDITIONS, AND I

2306
01:29:06,960 --> 01:29:09,160
ASKED THE COMMITTEE LAST TIME IF

2307
01:29:09,160 --> 01:29:10,920
THE COMMITTEE WAS INTERESTED IN

2308
01:29:10,920 --> 01:29:13,160
CONTINUING AND FINISHING THIS

2309
01:29:13,160 --> 01:29:15,200
REPORT, AND THE COMMITTEE DID

2310
01:29:15,200 --> 01:29:16,960
APPROVE WORK ON THIS REPORT.

2311
01:29:16,960 --> 01:29:18,600
AND SO OUR OFFICE WILL BE

2312
01:29:18,600 --> 01:29:19,560
PICKING UP THIS REPORT AS SOON

2313
01:29:19,560 --> 01:29:21,120
AS THE STRATEGIC PLAN IS

2314
01:29:21,120 --> 01:29:23,480
PUBLISHED AND WORKING ON THIS

2315
01:29:23,480 --> 01:29:26,160
OVER THE SUMMER TO GET A DRAFT

2316
01:29:26,160 --> 01:29:28,440
READY FOR THIS COMMITTEE TO

2317
01:29:28,440 --> 01:29:28,680
REVIEW.

2318
01:29:28,680 --> 01:29:30,720
AND WE WILL BE REACHING OUT TO

2319
01:29:30,720 --> 01:29:32,280
PEOPLE WHO ARE INVOLVED EARLIER

2320
01:29:32,280 --> 01:29:34,000
IN THE REPORT, AND DOING SOME

2321
01:29:34,000 --> 01:29:36,080
REVISIONS TO GET IT UP TO DATE.

2322
01:29:36,080 --> 01:29:38,600
SO YOU CAN EXPECT TO SEE SOME

2323
01:29:38,600 --> 01:29:40,240
E-MAILS ABOUT THIS BETWEEN NOW

2324
01:29:40,240 --> 01:29:47,560
AND THE NEXT MEETING OF THE IACC

2325
01:29:47,560 --> 01:29:47,840
IN OCTOBER.

2326
01:29:47,840 --> 01:29:53,040
AND JULIE TAYLOR HAS GRACIOUSLY

2327
01:29:53,040 --> 01:29:55,240
OFFERED TO CONTINUE CHAIRING THE

2328
01:29:55,240 --> 01:29:56,600
WORKING GROUP, WE'LL RECONVENE

2329
01:29:56,600 --> 01:29:57,640
MEMBERS TO TAKE A LOOK AT THE

2330
01:29:57,640 --> 01:29:59,440
REPORT AND HELP US WITH THE

2331
01:29:59,440 --> 01:30:02,160
UPDATE AS WELL.

2332
01:30:02,160 --> 01:30:03,880
 

2333
01:30:03,880 --> 01:30:06,520
WITH THE IACC SUMMARY OF

2334
01:30:06,520 --> 01:30:08,600
ADVANCES I'M PLEASED TO ANNOUNCE

2335
01:30:08,600 --> 01:30:10,920
2021 IACC SUMMARY OF ADVANCES

2336
01:30:10,920 --> 01:30:12,000
WAS RELEASED YESTERDAY, AND SO

2337
01:30:12,000 --> 01:30:15,280
MANY OF YOU PROBABLY SAW THAT IN

2338
01:30:15,280 --> 01:30:16,760
THE OARC NEWSLETTER, AND ON

2339
01:30:16,760 --> 01:30:17,040
TWITTER.

2340
01:30:17,040 --> 01:30:18,680
SO THIS IS A REPORT THAT WAS

2341
01:30:18,680 --> 01:30:21,760
REQUIRED BY THE AUTISM CARES ACT

2342
01:30:21,760 --> 01:30:23,040
OF 2019.

2343
01:30:23,040 --> 01:30:24,040
AND THIS COMMITTEE SELECTED 20

2344
01:30:24,040 --> 01:30:28,640
OF THE MOST SIGNIFICANT ADVANCES

2345
01:30:28,640 --> 01:30:30,040
IN ASD BIOMEDICAL AND SERVICES

2346
01:30:30,040 --> 01:30:32,480
RESEARCH OVER THE COURSE OF THE

2347
01:30:32,480 --> 01:30:33,680
WORK OF THIS COMMITTEE, THE

2348
01:30:33,680 --> 01:30:35,640
ARTICLES COVER ALL SEVEN AREAS

2349
01:30:35,640 --> 01:30:37,080
OF THE STRATEGIC PLAN.

2350
01:30:37,080 --> 01:30:39,200
SO, THE FULL REPORT CAN BE FOUND

2351
01:30:39,200 --> 01:30:43,760
AT THE LINK PROVIDED HERE. 

2352
01:30:43,760 --> 01:30:45,880
WE ALSO HAVE AN EASY-READ

2353
01:30:45,880 --> 01:30:46,960
VERSION CREATED FOR THIS REPORT.

2354
01:30:46,960 --> 01:30:49,040
THANK YOU FOR YOUR WORK ON THIS.

2355
01:30:49,040 --> 01:30:50,560
WE'RE WORKING TOWARD GETTING

2356
01:30:50,560 --> 01:30:52,080
CAUGHT UP ON THE SUMMARY OF

2357
01:30:52,080 --> 01:30:53,160
ADVANCES, SO HOPEFULLY WE WILL

2358
01:30:53,160 --> 01:30:56,160
SOON BE IN THE CURRENT YEAR

2359
01:30:56,160 --> 01:30:58,640
ONLY.

2360
01:30:58,640 --> 01:31:02,240
TO GIVE A STATUS UPDATE ON THE

2361
01:31:02,240 --> 01:31:05,000
2022 IACC SUMMARY OF ADVANCES,

2362
01:31:05,000 --> 01:31:07,400
WE'VE ALREADY HAD YOU NOMINATE

2363
01:31:07,400 --> 01:31:08,640
ARTICLES, DISCUSS THE

2364
01:31:08,640 --> 01:31:09,480
NOMINATIONS, AND VOTE.

2365
01:31:09,480 --> 01:31:11,800
AND SO NOW WE'RE AT THE STAGE OF

2366
01:31:11,800 --> 01:31:14,880
OUR OFFICE WORKING WITH OUR

2367
01:31:14,880 --> 01:31:16,640
CONTRACTOR TO PREPARE SUMMARIES

2368
01:31:16,640 --> 01:31:19,520
OF EACH ARTICLE, AND PREPARE THE

2369
01:31:19,520 --> 01:31:20,880
FULL DRAFT PUBLICATION.

2370
01:31:20,880 --> 01:31:22,400
AND SO ONCE THAT IS PREPARED WE

2371
01:31:22,400 --> 01:31:24,480
WILL GIVE THE COMMITTEE AN

2372
01:31:24,480 --> 01:31:25,800
OPPORTUNITY TO QUICKLY PREVIEW

2373
01:31:25,800 --> 01:31:28,200
IT, AND COMMENT ON THE DRAFT,

2374
01:31:28,200 --> 01:31:30,560
AND THEN WE WILL PREPARE IT FOR

2375
01:31:30,560 --> 01:31:32,160
A FINAL PUBLICATION OVER THE

2376
01:31:32,160 --> 01:31:34,120
SUMMER AND PRESENT IT BACK TO

2377
01:31:34,120 --> 01:31:42,400
YOU IN OCTOBER.

2378
01:31:42,400 --> 01:31:44,680
FOR THE 2023 IACC SUMMARY OF

2379
01:31:44,680 --> 01:31:46,480
ADVANCES, WE HAVE STARTED THE

2380
01:31:46,480 --> 01:31:48,760
PROCESS OF NOMINATING ARTICLES

2381
01:31:48,760 --> 01:31:50,320
FOR THIS YEAR FOR 2023.

2382
01:31:50,320 --> 01:31:52,600
AND TODAY WE'RE GOING TO DISCUSS

2383
01:31:52,600 --> 01:31:54,000
NOMINATIONS THAT HAVE COME IN SO

2384
01:31:54,000 --> 01:31:54,160
FAR.

2385
01:31:54,160 --> 01:31:57,080
AND THE REST OF THE PROCESS WILL

2386
01:31:57,080 --> 01:31:58,280
ENSUE AFTER THAT.

2387
01:31:58,280 --> 01:32:02,560
SO, ARE THERE ANY QUESTIONS UP

2388
01:32:02,560 --> 01:32:12,840
TO THIS POINT??

2389
01:32:12,840 --> 01:32:14,240
NOT HEARING OR SEEING ANY SO

2390
01:32:14,240 --> 01:32:15,240
I'LL MOVE US TO THE DISCUSSION

2391
01:32:15,240 --> 01:32:16,520
OF THE SUMMARY OF ADVANCES.

2392
01:32:16,520 --> 01:32:17,880
SOY THE GOAL OF TODAY'S

2393
01:32:17,880 --> 01:32:21,160
DISCUSSION WILL BE TO REVIEW THE

2394
01:32:21,160 --> 01:32:24,120
LIST OF 20 NOMINATED ARTICLES

2395
01:32:24,120 --> 01:32:26,120
THAT IF ACCEPTED WILL EVENTUALLY

2396
01:32:26,120 --> 01:32:27,720
APPEAR ON THE BALLOT.

2397
01:32:27,720 --> 01:32:29,600
AND SELECTED ARTICLES SHOULD

2398
01:32:29,600 --> 01:32:31,560
REPRESENT SIGNIFICANT ADVANCES

2399
01:32:31,560 --> 01:32:33,160
OR PROGRESS IN UNDERSTANDING

2400
01:32:33,160 --> 01:32:34,640
AUTISM ACROSS THE SEVEN AREAS OF

2401
01:32:34,640 --> 01:32:35,840
THE STRATEGIC PLAN.

2402
01:32:35,840 --> 01:32:38,800
AND THE SEVEN AREAS WE EXPECT TO

2403
01:32:38,800 --> 01:32:40,120
COVER MOST LIKELY BY THE END OF

2404
01:32:40,120 --> 01:32:43,000
THE YEAR AS WE TAKE IN ALL OF

2405
01:32:43,000 --> 01:32:44,520
THE DIFFERENT NOMINATIONS FROM

2406
01:32:44,520 --> 01:32:45,480
THE COMMITTEE.

2407
01:32:45,480 --> 01:32:47,920
SO, DURING THIS DISCUSSION,

2408
01:32:47,920 --> 01:32:49,240
YOU'RE WELCOME TO SHARE ANY

2409
01:32:49,240 --> 01:32:50,880
ARTICLES THAT YOU FIND

2410
01:32:50,880 --> 01:32:51,640
PARTICULARLY NOTEWORTHY, IF YOU

2411
01:32:51,640 --> 01:32:52,880
WANT TO SAY SOMETHING ABOUT

2412
01:32:52,880 --> 01:32:55,160
THEM, OR IF YOU HAVE ANY

2413
01:32:55,160 --> 01:32:57,240
CONCERNS ABOUT ANYTHING ON THE

2414
01:32:57,240 --> 01:32:59,720
LIST AND WOULD LIKE TO PROPOSE

2415
01:32:59,720 --> 01:33:00,720
REMOVAL FROM THE LIST.

2416
01:33:00,720 --> 01:33:03,560
KEEP IN MIND WE DID NOT WANT TO

2417
01:33:03,560 --> 01:33:04,640
INCLUDE STUDIES TOO PRELIMINARY

2418
01:33:04,640 --> 01:33:09,120
OR HAVE A VERY SMALL SAMPLE

2419
01:33:09,120 --> 01:33:11,320
SIZE, REVIEWS, COMMENTARIES OR

2420
01:33:11,320 --> 01:33:12,840
WORK GROUP RECOMMENDATIONS.

2421
01:33:12,840 --> 01:33:15,440
THIS PUBLICATION IS MEANT FOR

2422
01:33:15,440 --> 01:33:17,240
ORIGINAL RESEARCH FINDINGS IN

2423
01:33:17,240 --> 01:33:19,760
BOTH SERVICES RESEARCH AND

2424
01:33:19,760 --> 01:33:22,560
BIOMEDICAL RESEARCH.

2425
01:33:22,560 --> 01:33:22,880
 

2426
01:33:22,880 --> 01:33:25,960
SO I WILL SHARE WITH UP THE 20

2427
01:33:25,960 --> 01:33:30,560
NOMINATIONS THAT WE RECEIVED TO

2428
01:33:30,560 --> 01:33:30,760
DATE.

2429
01:33:30,760 --> 01:33:34,360
SO FOR QUESTION 1, WE HAVE FOUR

2430
01:33:34,360 --> 01:33:35,920
NOMINATIONS I BELIEVE.

2431
01:33:35,920 --> 01:33:37,920
YES, JUST FOUR.

2432
01:33:37,920 --> 01:33:40,640
SO, WE HAD DIFFERENTIAL

2433
01:33:40,640 --> 01:33:41,720
PERFORMANCE OF SOCIAL

2434
01:33:41,720 --> 01:33:42,680
COMMUNICATION QUESTIONNAIRE

2435
01:33:42,680 --> 01:33:45,640
ITEMS IN AFRICAN AMERICAN, BLACK

2436
01:33:45,640 --> 01:33:47,080
VERSUS WHITE CHILDREN.

2437
01:33:47,080 --> 01:33:49,080
PREDICTIVE VALUE OF EARLY AUTISM

2438
01:33:49,080 --> 01:33:51,360
DETECTION MODELS BASED ON

2439
01:33:51,360 --> 01:33:52,560
ELECTRONIC HEALTH RECORD DATA,

2440
01:33:52,560 --> 01:33:56,400
COLLECTED BEFORE THE AGE OF 1

2441
01:33:56,400 --> 01:33:56,720
YEAR.

2442
01:33:56,720 --> 01:33:58,680
EXAMINATION OF THE IMPACT OF THE

2443
01:33:58,680 --> 01:34:00,800
GET SET EARLY PROGRAM ON

2444
01:34:00,800 --> 01:34:03,520
EQUITABLE ACCESS TO CARE WITHIN

2445
01:34:03,520 --> 01:34:06,120
THE SCREEN-EVALUATE-TREAT CHAIN

2446
01:34:06,120 --> 01:34:07,680
IN TODDLERS WITH AUTISM SPECTRUM

2447
01:34:07,680 --> 01:34:08,680
DISORDER.

2448
01:34:08,680 --> 01:34:10,200
AND LEVEL OF ATTENTION TO

2449
01:34:10,200 --> 01:34:12,360
MOTHERESE SPEECH AS AN EARLY

2450
01:34:12,360 --> 01:34:14,280
MARKER OF AUTISM SPECTRUM

2451
01:34:14,280 --> 01:34:14,880
DISORDER.

2452
01:34:14,880 --> 01:34:16,440
SO DOES ANYONE HAVE COMMENTS

2453
01:34:16,440 --> 01:34:18,400
ABOUT ANY OF THESE NOMINATIONS

2454
01:34:18,400 --> 01:34:19,840
THAT CAME IN?

2455
01:34:19,840 --> 01:34:21,720
AND FOR ANYONE WHO IS WATCHING

2456
01:34:21,720 --> 01:34:24,560
ONLINE WE HAVE A LISTING ON OUR

2457
01:34:24,560 --> 01:34:26,280
WEBSITE ON THE MEETING PAGE OF

2458
01:34:26,280 --> 01:34:28,920
ALL OF THESE NOMINATIONS AS WELL

2459
01:34:28,920 --> 01:34:30,360
AND FOR COMMITTEE MEMBERS TOO

2460
01:34:30,360 --> 01:34:33,440
THERE'S A PACKET.

2461
01:34:33,440 --> 01:34:35,920
THE PACKET SHOWS WHO NOMINATED

2462
01:34:35,920 --> 01:34:36,840
ARTICLES AS WELL.

2463
01:34:36,840 --> 01:34:47,200
SO ANY COMMENTS HERE? 

2464
01:34:51,400 --> 01:34:53,840
I'M NOT SEEING ANY COMMENTS.

2465
01:34:53,840 --> 01:34:55,600
I'LL MOVE TO QUESTION 2.

2466
01:34:55,600 --> 01:34:59,560
WE HAD ONLY TWO NOMINATIONS

2467
01:34:59,560 --> 01:34:59,880
HERE.

2468
01:34:59,880 --> 01:35:05,240
PROFILE OF AUTISM

2469
01:35:05,240 --> 01:35:06,320
CHARACTERISTICS IN 13 SYNDROMES,

2470
01:35:06,320 --> 01:35:08,280
AND SEX DIFFERENCES IN SOCIAL

2471
01:35:08,280 --> 01:35:10,680
AND EMOTIONAL INSIGHT IN YOUTH

2472
01:35:10,680 --> 01:35:13,520
WITH AND WITHOUT AUTISM.

2473
01:35:13,520 --> 01:35:16,760
IS THERE ANY DISCUSSION OF THESE

2474
01:35:16,760 --> 01:35:20,160
ITEMS?

2475
01:35:20,160 --> 01:35:20,760
SUPPORT OR CONCERNS?

2476
01:35:20,760 --> 01:35:23,600
AND YOU DO HAVE A JUSTIFICATION

2477
01:35:23,600 --> 01:35:25,600
THAT WAS PROVIDED BY THE

2478
01:35:25,600 --> 01:35:29,160
INDIVIDUAL OR AGENCY THAT WAS

2479
01:35:29,160 --> 01:35:33,640
NOMINATING THE ARTICLE.

2480
01:35:33,640 --> 01:35:36,600
OH, IVANOVA SMITH, DO YOU HAVE A

2481
01:35:36,600 --> 01:35:36,840
COMMENT?

2482
01:35:36,840 --> 01:35:39,720
>>I JUST THINK IT'S
REALLY -- I

2483
01:35:39,720 --> 01:35:41,720
WANT TO SAY I SUPPORT -- I THINK

2484
01:35:41,720 --> 01:35:44,560
IT'S IMPORTANT THAT THERE'S MORE

2485
01:35:44,560 --> 01:35:47,120
RESEARCH ON SEXUALITY OF

2486
01:35:47,120 --> 01:35:49,840
AUTISTIC PEOPLE, AND SUPPORTING

2487
01:35:49,840 --> 01:35:53,480
PEOPLE, AUTISTIC PEOPLE,

2488
01:35:53,480 --> 01:35:54,560
UNDERSTANDING THEIR OWN SEX AND

2489
01:35:54,560 --> 01:35:56,640
THINGS LIKE THAT BECAUSE IT'S

2490
01:35:56,640 --> 01:35:57,760
VERY HARD, AUTISTIC PEOPLE

2491
01:35:57,760 --> 01:35:59,000
STRUGGLE WITH THAT.

2492
01:35:59,000 --> 01:36:00,040
I THINK THAT'S REALLY IMPORTANT

2493
01:36:00,040 --> 01:36:01,920
TO LOOK AT THAT.

2494
01:36:01,920 --> 01:36:02,440
SO THANK YOU.

2495
01:36:02,440 --> 01:36:03,440
>>THANK YOU.

2496
01:36:03,440 --> 01:36:07,280
YES, AND I THINK THIS ARTICLE

2497
01:36:07,280 --> 01:36:10,120
TALKS ABOUT THE DIFFERENCES IN

2498
01:36:10,120 --> 01:36:13,840
HOW PEOPLE OF DIFFERENT SEXES,

2499
01:36:13,840 --> 01:36:17,160
SO MALES AND FEMALES, INTERACT

2500
01:36:17,160 --> 01:36:18,960
SOCIALLY AND HOW MUCH EMOTIONAL

2501
01:36:18,960 --> 01:36:21,720
INSIGHT THEY HAVE.

2502
01:36:21,720 --> 01:36:25,240
YES, I APPRECIATE THAT COMMENT.

2503
01:36:25,240 --> 01:36:28,400
THANK YOU, IVANOVA.

2504
01:36:28,400 --> 01:36:29,360
ANYONE ELSE?

2505
01:36:29,360 --> 01:36:30,040
OKAY.

2506
01:36:30,040 --> 01:36:33,080
I WILL MOVE TO QUESTION 3.

2507
01:36:33,080 --> 01:36:34,320
WE DIDN'T HAVE ANY NOMINATIONS

2508
01:36:34,320 --> 01:36:36,200
FOR QUESTION 3 THIS TIME AROUND

2509
01:36:36,200 --> 01:36:38,040
BUT STAY TUNED FOR OCTOBER.

2510
01:36:38,040 --> 01:36:40,880
I'M SURE WE'LL HAVE SOME.

2511
01:36:40,880 --> 01:36:43,240
>>SUSAN, THERE'S A HAND
UP.

2512
01:36:43,240 --> 01:36:45,920
>>DINA, WOULD YOU LIKE TO

2513
01:36:45,920 --> 01:36:46,480
PROVIDE A COMMENT?

2514
01:36:46,480 --> 01:36:49,280
>>SORRY, I COULDN'T GET
TO MY

2515
01:36:49,280 --> 01:36:51,520
BUTTON FAST ENOUGH.

2516
01:36:51,520 --> 01:36:53,960
THE SAME ARTICLE THAT IVANOVA IS

2517
01:36:53,960 --> 01:36:55,840
COMMENTING ON, ONE OF THE

2518
01:36:55,840 --> 01:36:57,320
RELATIVE STRENGTHS THEY ARE

2519
01:36:57,320 --> 01:36:59,840
COMPARING AUTISTIC GIRLS TO

2520
01:36:59,840 --> 01:37:02,440
NON-AUTISTIC GIRLS WHICH IS SUCH

2521
01:37:02,440 --> 01:37:05,600
AN IMPROVEMENT, SO MUCH OF OUR

2522
01:37:05,600 --> 01:37:10,360
RESEARCH IS COMPROMISED BY THE

2523
01:37:10,360 --> 01:37:11,880
CONTINUED COMPARISON OF AUTISTIC

2524
01:37:11,880 --> 01:37:13,080
GIRLS TO BOYS.

2525
01:37:13,080 --> 01:37:14,880
YOU KNOW, SO I JUST WANTED TO

2526
01:37:14,880 --> 01:37:18,120
CHAMPION THAT ASPECT OF THE

2527
01:37:18,120 --> 01:37:18,480
STUDY.

2528
01:37:18,480 --> 01:37:19,200
>>THANK YOU, DINA.

2529
01:37:19,200 --> 01:37:19,880
THAT IS TRUE.

2530
01:37:19,880 --> 01:37:24,680
IT WAS A STRENGTH OF THAT STUDY.

2531
01:37:24,680 --> 01:37:27,280
ANY OTHER COMMENTS ON THIS?

2532
01:37:27,280 --> 01:37:29,480
FOR SOME REASON ON MY SCREEN I'M

2533
01:37:29,480 --> 01:37:32,880
NOT SEEING FACES, I SEE AT THE

2534
01:37:32,880 --> 01:37:35,040
BOTTOM IF SOMEBODY HAS A HAND

2535
01:37:35,040 --> 01:37:35,280
RAISED.

2536
01:37:35,280 --> 01:37:37,000
SORRY IF I'M NOT ABLE TO SEE

2537
01:37:37,000 --> 01:37:37,200
THAT.

2538
01:37:37,200 --> 01:37:39,560
>>I CAN HELP YOU, SUSAN.

2539
01:37:39,560 --> 01:37:40,240
I'LL LOOK FOR HANDS.

2540
01:37:40,240 --> 01:37:40,840
>>THANK YOU.

2541
01:37:40,840 --> 01:37:44,360
THAT WOULD BE GREAT, SHELLI.

2542
01:37:44,360 --> 01:37:46,240
 

2543
01:37:46,240 --> 01:37:47,520
QUESTION 4, INTERVENTIONS.

2544
01:37:47,520 --> 01:37:50,400
SO WE HAVE ONE NOMINATION.

2545
01:37:50,400 --> 01:37:52,680
THE EARLIER THE BETTER, RCT OF

2546
01:37:52,680 --> 01:37:53,640
TREATMENT TIMING EFFECTS FOR

2547
01:37:53,640 --> 01:38:00,320
TODDLERS ON THE AUTISM SPECTRUM.

2548
01:38:00,320 --> 01:38:03,960
ANY COMMENTS HERE?

2549
01:38:03,960 --> 01:38:07,360
>>NONE SO FAR.

2550
01:38:07,360 --> 01:38:08,760
>>OKAY.

2551
01:38:08,760 --> 01:38:13,920
SO I WILL MOVE TO QUESTION 5.

2552
01:38:13,920 --> 01:38:15,640
WE HAVE JUST THE THREE.

2553
01:38:15,640 --> 01:38:19,360
WE HAVE THREE FOR QUESTION 5.

2554
01:38:19,360 --> 01:38:20,920
PREPARING LAW ENFORCEMENT

2555
01:38:20,920 --> 01:38:25,160
OFFICERS TO ENGAGE SUCCESSFULLY

2556
01:38:25,160 --> 01:38:27,560
WITH INDIVIDUALS WITH AUTISM

2557
01:38:27,560 --> 01:38:29,240
SPECTRUM DISORDER, EVALUATION OF

2558
01:38:29,240 --> 01:38:30,200
PERFORMANCE-BASED APPROACH.

2559
01:38:30,200 --> 01:38:33,920
WE ALSO HAVE BARRIERS TO SERVICE

2560
01:38:33,920 --> 01:38:38,400
AND UNMET NEEDS AMONG AUTISTIC

2561
01:38:38,400 --> 01:38:40,040
ADOLESCENTS AND YOUNG ADULTS.

2562
01:38:40,040 --> 01:38:43,640
AND RACIAL AND ETHNIC

2563
01:38:43,640 --> 01:38:45,080
DISPARITIES IN GEOGRAPHIC ACCESS

2564
01:38:45,080 --> 01:38:46,720
TO AUTISM RESOURCES ACROSS THE

2565
01:38:46,720 --> 01:38:46,880
U.S.

2566
01:38:46,880 --> 01:38:52,040
SO ARE THERE ANY COMMENTS ON

2567
01:38:52,040 --> 01:38:52,240
THOSE?

2568
01:38:52,240 --> 01:38:55,600
>>HI.

2569
01:38:55,600 --> 01:38:59,640
THIS IS ALLISON FROM SOCIAL

2570
01:38:59,640 --> 01:38:59,880
SECURITY.

2571
01:38:59,880 --> 01:39:06,960
I WANT TO MENTION I HAD PUT

2572
01:39:06,960 --> 01:39:11,320
FORWARD THE ARTICLE, AND IT HAS

2573
01:39:11,320 --> 01:39:17,160
A COMPARATIVELY SMALL -- THEY

2574
01:39:17,160 --> 01:39:20,080
DID A PILOT BEFORE DOING IT, THE

2575
01:39:20,080 --> 01:39:24,240
MAIN STUDY, BUT IT WAS SUCH AN

2576
01:39:24,240 --> 01:39:26,800
IMPORTANT AREA, WHICH HAS VERY

2577
01:39:26,800 --> 01:39:27,640
MINIMAL RESEARCH BEHIND IT, I

2578
01:39:27,640 --> 01:39:31,280
THOUGHT IT WAS IMPORTANT TO

2579
01:39:31,280 --> 01:39:32,040
INCLUDE IT.

2580
01:39:32,040 --> 01:39:35,280
SO, THAT IS WHY I DID PUT IN

2581
01:39:35,280 --> 01:39:37,160
SOMETHING WHICH DID HAVE A

2582
01:39:37,160 --> 01:39:38,920
SMALLER SAMPLE SIZE THAN I WOULD

2583
01:39:38,920 --> 01:39:43,400
NORMALLY GO FOR.

2584
01:39:43,400 --> 01:39:46,240
I WANT PEOPLE TO HAVE THAT IN

2585
01:39:46,240 --> 01:39:46,760
MIND, KEEP THAT IN MIND.

2586
01:39:46,760 --> 01:39:52,080
>>THANKS SO MUCH FOR THE

2587
01:39:52,080 --> 01:39:53,160
ADDITIONAL INFORMATION, ALLISON.

2588
01:39:53,160 --> 01:39:55,560
>>THERE'S A HAND UP.

2589
01:39:55,560 --> 01:39:56,240
>>MARIA?

2590
01:39:56,240 --> 01:39:57,160
>>OH, HELLO.

2591
01:39:57,160 --> 01:39:59,200
THANK YOU SO MUCH.

2592
01:39:59,200 --> 01:40:00,840
I JUST WANTED TO, YOU KNOW,

2593
01:40:00,840 --> 01:40:04,280
CONCUR AND SAY THANK YOU SO MUCH

2594
01:40:04,280 --> 01:40:05,440
FOR THIS SUBMISSION.

2595
01:40:05,440 --> 01:40:07,760
I'M FORWARDING MANY OF THE

2596
01:40:07,760 --> 01:40:11,600
SLIDES AND DISCUSSION TO SOME OF

2597
01:40:11,600 --> 01:40:14,880
OUR TEAMS, OUR TECHNICAL

2598
01:40:14,880 --> 01:40:16,200
ASSISTANCE, PROVIDERS, AS I'M

2599
01:40:16,200 --> 01:40:17,160
GOING THROUGH THIS BECAUSE

2600
01:40:17,160 --> 01:40:19,480
THROUGH OUR STEPPING UP

2601
01:40:19,480 --> 01:40:21,000
INITIATIVE WHERE WE'RE LOOKING

2602
01:40:21,000 --> 01:40:26,720
AT COUNTIES AND COUNTY

2603
01:40:26,720 --> 01:40:27,800
COLLABORATIVES BETWEEN EITHER

2604
01:40:27,800 --> 01:40:29,200
PUBLIC SAFETY, LAW ENFORCEMENT

2605
01:40:29,200 --> 01:40:31,320
AND JUSTICE PARTNERS AND

2606
01:40:31,320 --> 01:40:34,640
PARTNERSHIP WITH OTHER SERVICE

2607
01:40:34,640 --> 01:40:35,800
PROVIDERS AND COMMUNITY

2608
01:40:35,800 --> 01:40:38,200
PARTNERSHIPS, TRYING TO -- WE'RE

2609
01:40:38,200 --> 01:40:40,080
TRYING TO LOOK AT, YOU KNOW, NOT

2610
01:40:40,080 --> 01:40:41,840
ONLY THE IMPACT AND

2611
01:40:41,840 --> 01:40:46,960
EFFECTIVENESS OF MODELS BUT ALSO

2612
01:40:46,960 --> 01:40:48,800
TALKING ABOUT RACIAL AND ETHNIC

2613
01:40:48,800 --> 01:40:50,760
DISPARITIES, KIND OF DOING A

2614
01:40:50,760 --> 01:40:53,400
CROSSWALK WITH, YOU KNOW, WHO IS

2615
01:40:53,400 --> 01:40:56,680
COMING INTO THE JAIL AND WHY,

2616
01:40:56,680 --> 01:41:00,520
AND SO I WAS TAKING NOTES

2617
01:41:00,520 --> 01:41:02,160
THROUGH THE CDC PRESENTATION AND

2618
01:41:02,160 --> 01:41:04,120
SOME NUMBERS THERE, AND MOVING

2619
01:41:04,120 --> 01:41:06,640
THAT ALONG TO SEE IF WE CAN

2620
01:41:06,640 --> 01:41:09,040
MAYBE START A DIALOGUE, CREATE A

2621
01:41:09,040 --> 01:41:09,680
BRIEF AROUND THAT.

2622
01:41:09,680 --> 01:41:12,000
AND SO THIS IS REALLY WONDERFUL

2623
01:41:12,000 --> 01:41:13,640
TO SEE THESE ARTICLES HERE, SO

2624
01:41:13,640 --> 01:41:16,800
THAT WE CAN TALK MORE ABOUT

2625
01:41:16,800 --> 01:41:19,320
CO-OCCURRING DISORDER AND SORT

2626
01:41:19,320 --> 01:41:22,600
OF CROSSWALK THAT WITH THAT

2627
01:41:22,600 --> 01:41:23,360
INTERACTIONS, WITH LAW

2628
01:41:23,360 --> 01:41:24,800
ENFORCEMENT, AND JUST GET AT

2629
01:41:24,800 --> 01:41:29,040
SOME OF THE REASONS BEHIND THAT

2630
01:41:29,040 --> 01:41:31,000
AND SOME UNDERLYING SORT OF

2631
01:41:31,000 --> 01:41:32,360
ENVIRONMENTAL FACTORS AND, YOU

2632
01:41:32,360 --> 01:41:33,880
KNOW, SOCIAL DETERMINANTS OF

2633
01:41:33,880 --> 01:41:35,400
HEALTH AND THINKING THROUGH LIKE

2634
01:41:35,400 --> 01:41:37,240
WHY IS THAT AND WHAT CAN WE DO

2635
01:41:37,240 --> 01:41:38,440
TO IMPACT CHANGE.

2636
01:41:38,440 --> 01:41:41,000
SO I'M REALLY HAPPY TO SEE

2637
01:41:41,000 --> 01:41:41,280
THESE.

2638
01:41:41,280 --> 01:41:41,560
THANK YOU.

2639
01:41:41,560 --> 01:41:42,280
>>EXCELLENT.

2640
01:41:42,280 --> 01:41:45,480
THANK YOU SO MUCH, MARIA.

2641
01:41:45,480 --> 01:41:49,280
>>AND WE HAVE SCOTT WITH
HIS

2642
01:41:49,280 --> 01:41:49,520
HAND UP.

2643
01:41:49,520 --> 01:41:50,480
>>THANK YOU.

2644
01:41:50,480 --> 01:41:52,040
>>THANK YOU.

2645
01:41:52,040 --> 01:41:53,160
I DIDN'T NOMINATE THESE

2646
01:41:53,160 --> 01:41:53,480
ARTICLES.

2647
01:41:53,480 --> 01:41:57,200
I THINK IT'S GREAT ESPECIALLY

2648
01:41:57,200 --> 01:42:01,160
WITH RESEARCH ARTICLES LOOKING

2649
01:42:01,160 --> 01:42:04,000
AT RACE/ETHNICITY, GEOGRAPHY,

2650
01:42:04,000 --> 01:42:04,760
GENDER IDENTITY, SEXUAL

2651
01:42:04,760 --> 01:42:06,200
ORIENTATIONS, LIKE THESE

2652
01:42:06,200 --> 01:42:07,280
DIVERSITY ASPECTS.

2653
01:42:07,280 --> 01:42:08,800
I THINK IT'S REALLY HELPFUL TO

2654
01:42:08,800 --> 01:42:10,800
SEE THIS MORE AND MORE IN THE

2655
01:42:10,800 --> 01:42:12,160
RESEARCH LITERATURE AS WE GO

2656
01:42:12,160 --> 01:42:13,840
THROUGH TIME BECAUSE I THINK

2657
01:42:13,840 --> 01:42:16,640
IT'S BEEN SO MUCH LEFT OUT OVER

2658
01:42:16,640 --> 01:42:19,280
THE YEARS, AND I THINK THAT

2659
01:42:19,280 --> 01:42:20,200
WE'RE GETTING BETTER COVERAGE

2660
01:42:20,200 --> 01:42:21,720
NOW SO THAT'S GREAT.

2661
01:42:21,720 --> 01:42:22,920
I'M GLAD FOLKS ARE NOMINATING

2662
01:42:22,920 --> 01:42:24,120
THAT.

2663
01:42:24,120 --> 01:42:24,800
I'LL MAKE SURE TO INCLUDE

2664
01:42:24,800 --> 01:42:26,960
SIMILAR THINGS WHEN I MAKE

2665
01:42:26,960 --> 01:42:28,320
NOMINATIONS LATER ON.

2666
01:42:28,320 --> 01:42:30,360
I HADN'T MADE A NOMINATION FOR

2667
01:42:30,360 --> 01:42:32,560
AN ARTICLE YET.

2668
01:42:32,560 --> 01:42:34,680
>>WONDERFUL.

2669
01:42:34,680 --> 01:42:37,040
THANK YOU, SCOTT.

2670
01:42:37,040 --> 01:42:37,600
>>AND YETTA?

2671
01:42:37,600 --> 01:42:41,000
>>THANK YOU.

2672
01:42:41,000 --> 01:42:42,640
I APPRECIATE THOUGHTFULNESS

2673
01:42:42,640 --> 01:42:44,400
TAKEN TO BASICALLY PUT THESE

2674
01:42:44,400 --> 01:42:46,600
ARTICLES FORWARD.

2675
01:42:46,600 --> 01:42:48,880
I THINK THAT AS WE TALK ABOUT

2676
01:42:48,880 --> 01:42:50,240
LAW ENFORCEMENT AND OTHER

2677
01:42:50,240 --> 01:42:53,680
GROUPS, I WOULD SAY TO THE WHOLE

2678
01:42:53,680 --> 01:42:54,840
IACC MEMBERSHIP AND MYSELF

2679
01:42:54,840 --> 01:43:00,920
INCLUDED WE NEED TO BE THINKING

2680
01:43:00,920 --> 01:43:04,360
BROADLY ABOUT GROUPS INTERFACING

2681
01:43:04,360 --> 01:43:06,400
WITH THE COMMUNITY, AND REALLY

2682
01:43:06,400 --> 01:43:08,160
THINK ABOUT PUTTING FORTH MORE

2683
01:43:08,160 --> 01:43:09,920
ARTICLES SUCH AS THIS, SO I KNOW

2684
01:43:09,920 --> 01:43:11,320
ALLISON SAID IT'S A SMALL SAMPLE

2685
01:43:11,320 --> 01:43:12,600
BUT THIS IS SOMETHING THAT'S

2686
01:43:12,600 --> 01:43:15,920
COME UP IN SOME WORK I'M DOING

2687
01:43:15,920 --> 01:43:17,880
NATIONALLY, AND THEN IN TERMS OF

2688
01:43:17,880 --> 01:43:19,960
THINKING ABOUT LIKE BARRIERS TO

2689
01:43:19,960 --> 01:43:21,960
SERVICE AND UNMET NEED, LIKE

2690
01:43:21,960 --> 01:43:23,480
THERE'S BEEN SO MUCH FOCUS ON

2691
01:43:23,480 --> 01:43:26,200
SCHOOL AGE BUT AS MY SON IS

2692
01:43:26,200 --> 01:43:27,520
GETTING OLDER, HE'S NOW 19,

2693
01:43:27,520 --> 01:43:29,280
THINKING ABOUT WHAT DO SERVICES

2694
01:43:29,280 --> 01:43:31,360
LOOK LIKE, AS MY SON AGES AND

2695
01:43:31,360 --> 01:43:33,960
BECOMES AN ADULT IS IMPORTANT.

2696
01:43:33,960 --> 01:43:37,480
AND THEN ALSO TOO THIS IDEA OF,

2697
01:43:37,480 --> 01:43:38,840
YOU KNOW, DISPARITY, DEPENDING

2698
01:43:38,840 --> 01:43:40,000
WHERE PEOPLE LIVE, THIS IS

2699
01:43:40,000 --> 01:43:42,400
ANOTHER THING THAT IS COMING UP.

2700
01:43:42,400 --> 01:43:44,520
SO I THINK THESE THREE ARTICLES

2701
01:43:44,520 --> 01:43:46,680
ARE SPOT ON, AND I HOPE THAT,

2702
01:43:46,680 --> 01:43:49,840
YOU KNOW, AS A GROUP ONCE WE DIG

2703
01:43:49,840 --> 01:43:52,040
DEEPER THAT THESE WILL

2704
01:43:52,040 --> 01:43:55,240
DEFINITELY BE INCLUDED IN THE

2705
01:43:55,240 --> 01:43:57,960
LARGE SUMMARY. 

2706
01:43:57,960 --> 01:43:58,680
YEAH, SO THANK YOU.

2707
01:43:58,680 --> 01:44:01,680
>>THANK YOU SO MUCH,
YETTA.

2708
01:44:01,680 --> 01:44:04,320
ANY OTHER COMMENTS ON QUESTION

2709
01:44:04,320 --> 01:44:08,720
5? 

2710
01:44:08,720 --> 01:44:09,880
>>NO OTHER HANDS, SUSAN.

2711
01:44:09,880 --> 01:44:12,560
>>THANK YOU SO MUCH.

2712
01:44:12,560 --> 01:44:15,720
WE'LL MOVE TO QUESTION 6.

2713
01:44:15,720 --> 01:44:17,920
I WAS TRYING TO REMEMBER WHICH

2714
01:44:17,920 --> 01:44:19,120
ONES HAD MULTIPLE.

2715
01:44:19,120 --> 01:44:22,040
WE HAVE FOUR ARTICLES FOR

2716
01:44:22,040 --> 01:44:23,160
QUESTION 6 INCLUDING PREDICTORS

2717
01:44:23,160 --> 01:44:26,240
OF SLEEP QUALITY FOR AUTISTIC

2718
01:44:26,240 --> 01:44:27,920
PEOPLE ACROSS ADULTHOOD, GIRLS

2719
01:44:27,920 --> 01:44:30,240
WITH SOCIAL AND/OR ATTENTION

2720
01:44:30,240 --> 01:44:35,960
DEFICIT REEXAMINED IN YOUNG

2721
01:44:35,960 --> 01:44:37,720
ADULTHOOD, DAILY LIFE

2722
01:44:37,720 --> 01:44:39,120
FUNCTIONING, SOCIAL SITUATION.

2723
01:44:39,120 --> 01:44:41,480
AND LONGITUDINAL STUDY ON

2724
01:44:41,480 --> 01:44:44,360
COGNITIVE AGING IN AUTISM.

2725
01:44:44,360 --> 01:44:45,720
AND FINALLY, PSYCHOLOGICAL,

2726
01:44:45,720 --> 01:44:48,760
BEHAVIORAL, AND BIOLOGICAL

2727
01:44:48,760 --> 01:44:49,440
FACTORS ASSOCIATED WITH

2728
01:44:49,440 --> 01:44:50,960
GASTROINTESTINAL SYMPTOMS IN

2729
01:44:50,960 --> 01:44:53,240
AUTISTIC ADULTS AND ADULTS WITH

2730
01:44:53,240 --> 01:44:56,200
AUTISTIC TRAITS.

2731
01:44:56,200 --> 01:45:06,720
SO ANY COMMENTS HERE FOR THESE

2732
01:45:11,400 --> 01:45:12,240
FOUR ARTICLES?

2733
01:45:12,240 --> 01:45:12,440
DINA?

2734
01:45:12,440 --> 01:45:13,640
>>I WAS GOING THROUGH THE
SLEEP

2735
01:45:13,640 --> 01:45:14,400
STUDY ARTICLE.

2736
01:45:14,400 --> 01:45:16,520
IT DOES MAKE MENTION OF USE OF

2737
01:45:16,520 --> 01:45:19,040
SOCIAL SERVICE SYSTEMS, AS A

2738
01:45:19,040 --> 01:45:20,320
FACTOR IN SLEEP QUALITY.

2739
01:45:20,320 --> 01:45:25,000
BUT I CANNOT FIND WHAT THAT

2740
01:45:25,000 --> 01:45:26,440
FACTOR IS.

2741
01:45:26,440 --> 01:45:31,400
IS IT THAT HAVING MORE

2742
01:45:31,400 --> 01:45:33,480
PREDICTABILITY DUE TO SOCIAL

2743
01:45:33,480 --> 01:45:34,720
SERVICES REDUCE SLEEP

2744
01:45:34,720 --> 01:45:35,040
DISTURBANCES?

2745
01:45:35,040 --> 01:45:37,040
I COULDN'T SEEM TO FIND THAT IN

2746
01:45:37,040 --> 01:45:39,480
THE STUDY.

2747
01:45:39,480 --> 01:45:41,040
AND GIVEN THE DIFFICULTIES WE'RE

2748
01:45:41,040 --> 01:45:42,680
HAVING IN GETTING LATE LIFE

2749
01:45:42,680 --> 01:45:45,160
SERVICES FOR PEOPLE WHO WEREN'T

2750
01:45:45,160 --> 01:45:46,600
DIAGNOSED BEFORE 21, I THINK

2751
01:45:46,600 --> 01:45:47,360
THAT'S LIKE REALLY SIGNIFICANT

2752
01:45:47,360 --> 01:45:52,400
IN TERMS OF LOOKING AT  AT SERVE

2753
01:45:52,400 --> 01:45:52,680
DELIVERY.

2754
01:45:52,680 --> 01:45:56,240
JUST A QUESTION, I DON'T KNOW IF

2755
01:45:56,240 --> 01:45:57,600
SOMEONE DID A BETTER READING AND

2756
01:45:57,600 --> 01:46:00,080
FOUND THE TRUTH, THE STORY TO

2757
01:46:00,080 --> 01:46:00,280
THAT?

2758
01:46:00,280 --> 01:46:00,840
BUT YEAH.

2759
01:46:00,840 --> 01:46:02,480
>>I DON'T KNOW IF ANYONE
HAS

2760
01:46:02,480 --> 01:46:05,040
THAT ANSWER.

2761
01:46:05,040 --> 01:46:05,440
>>I'LL RE-READ IT.

2762
01:46:05,440 --> 01:46:06,440
>>YEAH.

2763
01:46:06,440 --> 01:46:08,440
I GUESS WE CAN ALL IMAGINE

2764
01:46:08,440 --> 01:46:10,080
MULTIPLE REASONS WHY SOMEONE

2765
01:46:10,080 --> 01:46:12,080
THAT ISN'T GETTING GOOD SERVICES

2766
01:46:12,080 --> 01:46:16,320
MIGHT HAVE TROUBLE WITH SLEEP.

2767
01:46:16,320 --> 01:46:18,960
BUT, YEAH, I DON'T SEE ANY HANDS

2768
01:46:18,960 --> 01:46:21,080
RAISED FOR THAT.

2769
01:46:21,080 --> 01:46:23,320
>>OKAY.

2770
01:46:23,320 --> 01:46:23,600
THANK YOU.

2771
01:46:23,600 --> 01:46:30,360
>>THANK YOU SO MUCH. 

2772
01:46:30,360 --> 01:46:36,400
ANY OTHER COMMENTS? 

2773
01:46:36,400 --> 01:46:36,960
>>NO HANDS, SUSAN.

2774
01:46:36,960 --> 01:46:38,120
>>ALL RIGHT.

2775
01:46:38,120 --> 01:46:41,840
WE'LL MOVE ON TO QUESTION 7. 

2776
01:46:41,840 --> 01:46:44,280
THERE ARE TWO PAGES OF QUESTION

2777
01:46:44,280 --> 01:46:44,400
7.

2778
01:46:44,400 --> 01:46:47,280
PREVALENCE AND TREATMENT MUCH

2779
01:46:47,280 --> 01:46:52,560
MENTAL, BEHAVIORAL,

2780
01:46:52,560 --> 01:46:55,080
DEVELOPMENTAL DISORDERS IN

2781
01:46:55,080 --> 01:46:57,360
CHILDREN, WE HAVE ADOLESCENTS

2782
01:46:57,360 --> 01:46:58,400
WITH DIAGNOSTIC PATTERNS

2783
01:46:58,400 --> 01:47:01,560
CO-OCCURRING CONDITIONS AND

2784
01:47:01,560 --> 01:47:02,960
TRANSITION PLANNING.

2785
01:47:02,960 --> 01:47:05,600
WE HAVE PREVALENCE AND

2786
01:47:05,600 --> 01:47:07,000
CHARACTERISTICS OF AUTISM

2787
01:47:07,000 --> 01:47:09,400
SPECTRUM DISORDER AMONG CHILDREN

2788
01:47:09,400 --> 01:47:12,680
AGED 8 YEARS, AUTISM AND

2789
01:47:12,680 --> 01:47:13,240
DEVELOPMENTAL DISABILITIES

2790
01:47:13,240 --> 01:47:14,320
MONITORING NETWORK, 11 SITES,

2791
01:47:14,320 --> 01:47:20,160
WHICH WE JUST HEARD ABOUT.

2792
01:47:20,160 --> 01:47:23,760
AND WE HAVE -- OOPS.

2793
01:47:23,760 --> 01:47:26,840
EARLY IDENTIFICATION OF AUTISM

2794
01:47:26,840 --> 01:47:29,880
SPECTRUM DISORDER AMONG CHILDREN

2795
01:47:29,880 --> 01:47:31,880
AGE THE 4 YEARS, 11 SITES IN THE

2796
01:47:31,880 --> 01:47:33,960
UNITED STATES.

2797
01:47:33,960 --> 01:47:37,160
WHICH ALSO WAS DISCUSSED TODAY.

2798
01:47:37,160 --> 01:47:39,640
STATEWIDE COUNTY LEVEL AUTISM

2799
01:47:39,640 --> 01:47:40,760
SPECTRUM DISORDER ESTIMATES,

2800
01:47:40,760 --> 01:47:42,680
SEVEN U.S. STATES.

2801
01:47:42,680 --> 01:47:44,000
AND PREVALENCE AND DISPARITIES

2802
01:47:44,000 --> 01:47:47,000
IN THE DETECTION OF AUTISM

2803
01:47:47,000 --> 01:47:47,880
WITHOUT INTELLECTUAL DISABILITY.

2804
01:47:47,880 --> 01:47:51,480
SO THOSE ARE ALL OUR

2805
01:47:51,480 --> 01:47:52,280
NOMINATIONS.

2806
01:47:52,280 --> 01:47:54,080
DO WE HAVE ANY COMMENTS FOR

2807
01:47:54,080 --> 01:47:57,400
ANYONE THAT WAS A NOMINATOR HERE

2808
01:47:57,400 --> 01:48:00,000
WOULD LIKE TO SAY ANYTHING IN

2809
01:48:00,000 --> 01:48:02,640
SUPPORT OF THESE ARTICLES OR

2810
01:48:02,640 --> 01:48:04,360
DOES ANYONE HAVE CONCERNS?

2811
01:48:04,360 --> 01:48:08,040
>>KARYL HAS HER HAND UP.

2812
01:48:08,040 --> 01:48:09,360
>>GO AHEAD, KARYL.

2813
01:48:09,360 --> 01:48:10,720
>>HI.

2814
01:48:10,720 --> 01:48:13,000
SO, OBVIOUSLY I'M BIASED FROM

2815
01:48:13,000 --> 01:48:15,200
OUR PERSPECTIVE OF THE WORK WE

2816
01:48:15,200 --> 01:48:20,240
DO, BUT SO TWO OF THE PAPERS,

2817
01:48:20,240 --> 01:48:22,440
MAENNER AND THE FIRST SHAW PAPER

2818
01:48:22,440 --> 01:48:26,080
ARE THE TWO THAT WERE DESCRIBED

2819
01:48:26,080 --> 01:48:27,680
IN DETAIL TODAY.

2820
01:48:27,680 --> 01:48:29,880
YOU KNOW, WE BELIEVE THERE'S

2821
01:48:29,880 --> 01:48:31,200
JUST SUCH TREMENDOUS VALUE IN

2822
01:48:31,200 --> 01:48:35,520
UNDERSTANDING PREVALENCE, CHANGE

2823
01:48:35,520 --> 01:48:36,200
PREVALENCE, CHANGE IN

2824
01:48:36,200 --> 01:48:38,840
DISPARITIES, AND ALSO VERY

2825
01:48:38,840 --> 01:48:40,200
IMPORTANTLY EARLY IDENTIFICATION

2826
01:48:40,200 --> 01:48:45,760
AS WELL AS LEARNING HOW THE

2827
01:48:45,760 --> 01:48:47,480
PANDEMIC IMPACTED IDENTIFICATION

2828
01:48:47,480 --> 01:48:48,240
OF 4-YEAR-OLDS.

2829
01:48:48,240 --> 01:48:49,440
CERTAINLY WE SEE THOSE AS

2830
01:48:49,440 --> 01:48:50,880
IMPORTANT PAPERS, BUT THE OTHER

2831
01:48:50,880 --> 01:48:53,960
TWO I ALSO WANTED TO HIGHLIGHT

2832
01:48:53,960 --> 01:48:56,560
AS BRINGING VALUE, SO THE SECOND

2833
01:48:56,560 --> 01:49:00,080
SHAW UP THERE RIGHT NOW, KELLY

2834
01:49:00,080 --> 01:49:02,080
DID TALK ABOUT THAT A LITTLE

2835
01:49:02,080 --> 01:49:02,240
BIT.

2836
01:49:02,240 --> 01:49:04,360
I'VE SEEN THIS AS A BIT OF A

2837
01:49:04,360 --> 01:49:08,400
WATERSHED PAPER BECAUSE WE'RE

2838
01:49:08,400 --> 01:49:10,920
TAKING THIS IN-DEPTH ADDM DATA,

2839
01:49:10,920 --> 01:49:12,360
USING A DIFFERENT METHODOLOGY,

2840
01:49:12,360 --> 01:49:18,240
AND VALIDATING THE FACT THAT WE

2841
01:49:18,240 --> 01:49:21,200
CAN DO STATEWIDE PREVALENCE IN

2842
01:49:21,200 --> 01:49:23,120
AN EASIER WAY WITH LESS RESOURCE

2843
01:49:23,120 --> 01:49:29,640
INTENSE, OF COURSE WE DON'T GET

2844
01:49:29,640 --> 01:49:30,720
ALL OF THE INFORMATION.

2845
01:49:30,720 --> 01:49:33,240
RIGHT NOW MANY STATES DON'T HAVE

2846
01:49:33,240 --> 01:49:34,360
GOOD AUTISM PREVALENCE DATA, AND

2847
01:49:34,360 --> 01:49:36,520
SO I THINK THAT THIS STUDY

2848
01:49:36,520 --> 01:49:38,480
BRINGS GREAT VALUE.

2849
01:49:38,480 --> 01:49:48,760
AND THEN GO BACK TO THE FIRST

2850
01:49:48,760 --> 01:49:50,320
PAGE ON THIS, THERE IS -- ARE

2851
01:49:50,320 --> 01:49:54,000
YOU ABLE TO GO UP ONE SLIDE?

2852
01:49:54,000 --> 01:49:55,200
>>YES.

2853
01:49:55,200 --> 01:49:57,960
>>YEAH, THE HUGHES PAPER.

2854
01:49:57,960 --> 01:49:58,880
LOOKED AT DIAGNOSTIC PATTERNS,

2855
01:49:58,880 --> 01:50:00,800
SO WAS ABLE TO LOOK AT THE

2856
01:50:00,800 --> 01:50:05,440
16-YEAR-OLDS THAT WE NOW HAVE IN

2857
01:50:05,440 --> 01:50:09,480
OUR SYSTEM, AND CO-OCCURRING

2858
01:50:09,480 --> 01:50:10,200
CONDITIONS AND BETTER UNDERSTAND

2859
01:50:10,200 --> 01:50:12,840
SO, FOR EXAMPLE, THEY LOOKED AT

2860
01:50:12,840 --> 01:50:14,520
TRANSITION PLANS WHO HAD THEM,

2861
01:50:14,520 --> 01:50:19,000
TWO DIDN'T, AND FOUND, FOR

2862
01:50:19,000 --> 01:50:20,440
EXAMPLE, THOSE WITH INTELLECTUAL

2863
01:50:20,440 --> 01:50:21,760
DISABILITIES WERE NOT -- WERE

2864
01:50:21,760 --> 01:50:23,400
LESS LIKELY TO HAVE TRANSITION

2865
01:50:23,400 --> 01:50:23,600
PLANS.

2866
01:50:23,600 --> 01:50:26,000
I THINK THAT'S REALLY IMPORTANT

2867
01:50:26,000 --> 01:50:27,000
INFORMATION.

2868
01:50:27,000 --> 01:50:30,520
ALSO, WE'RE ABLE TO FIND THOSE

2869
01:50:30,520 --> 01:50:35,040
WITH CO-OCCURRING MENTAL HEALTH

2870
01:50:35,040 --> 01:50:36,880
CONDITIONS, I'M PROBABLY GOING

2871
01:50:36,880 --> 01:50:38,640
TO SAY THIS WRONG, HAD LATER

2872
01:50:38,640 --> 01:50:40,080
DIAGNOSES, THERE MAY HAVE BEEN

2873
01:50:40,080 --> 01:50:44,920
MORE CONFUSION  AROUND DIAGNOSES

2874
01:50:44,920 --> 01:50:46,080
EARLIER, AND SO THAT MAY HAVE

2875
01:50:46,080 --> 01:50:47,920
LED TO THIS IS MORE OF A

2876
01:50:47,920 --> 01:50:50,080
HYPOTHESIS BUT MAY HAVE LED TO A

2877
01:50:50,080 --> 01:50:53,520
LATER DIAGNOSIS, SO I THINK

2878
01:50:53,520 --> 01:50:55,440
THERE'S SOME REAL VALUABLE

2879
01:50:55,440 --> 01:50:56,800
INFORMATION IN THESE AND WOULD

2880
01:50:56,800 --> 01:50:59,600
ENCOURAGE FOLKS TO TAKE A LOOK

2881
01:50:59,600 --> 01:50:59,800
AT THEM.

2882
01:50:59,800 --> 01:51:03,720
>>THANK YOU SO MUCH,
KARYL, FOR

2883
01:51:03,720 --> 01:51:06,240
THAT EXTRA INFORMATION ABOUT

2884
01:51:06,240 --> 01:51:08,320
THOSE PAPERS.

2885
01:51:08,320 --> 01:51:10,720
AND ARE THERE OTHER COMMENTS

2886
01:51:10,720 --> 01:51:17,080
THAT ANYONE HAS ON THESE? 

2887
01:51:17,080 --> 01:51:19,360
JUST TO NOTE FOR EVERYONE IF YOU

2888
01:51:19,360 --> 01:51:20,640
NOTICE QUESTION 7 INFRASTRUCTURE

2889
01:51:20,640 --> 01:51:28,240
AND  PREVALENCE,ED USED TO BE

2890
01:51:28,240 --> 01:51:29,000
INFRASTRUCTURE AND SURVEILLANCE,

2891
01:51:29,000 --> 01:51:30,560
AND SOME THOUGHT THAT MEANT BIG

2892
01:51:30,560 --> 01:51:31,840
BROTHER, SO WE CHANGED TO

2893
01:51:31,840 --> 01:51:33,600
PREVALENCE TO MAKE IT CLEARER

2894
01:51:33,600 --> 01:51:36,880
AND A LITTLE BIT MORE PLAIN

2895
01:51:36,880 --> 01:51:37,400
LANGUAGE.

2896
01:51:37,400 --> 01:51:41,240
SO THAT HAS BEEN A RECENT CHANGE

2897
01:51:41,240 --> 01:51:42,120
WITHIN THE LAST YEAR.

2898
01:51:42,120 --> 01:51:43,240
ALL RIGHT.

2899
01:51:43,240 --> 01:51:45,200
I'M NOT SEEING ANY OTHER

2900
01:51:45,200 --> 01:51:45,480
COMMENTS.

2901
01:51:45,480 --> 01:51:49,200
YOU DON'T SEE ANY SHELLI?

2902
01:51:49,200 --> 01:51:56,360
>>NO, YOU'RE CLEAR.

2903
01:51:56,360 --> 01:51:56,680
>>OKAY.

2904
01:51:56,680 --> 01:51:57,880
LET ME GIVE YOU A SUMMARY.

2905
01:51:57,880 --> 01:51:59,960
WE HAVE A LITTLE BIT LESS ON

2906
01:51:59,960 --> 01:52:01,480
COMMITTEE BUSINESS TODAY BECAUSE

2907
01:52:01,480 --> 01:52:04,120
WE DIDN'T HAVE A BIG PROJECT TO

2908
01:52:04,120 --> 01:52:04,640
DISCUSS.

2909
01:52:04,640 --> 01:52:06,520
AND THANK YOU AGAIN FOR ALL THE

2910
01:52:06,520 --> 01:52:09,000
WORK THAT WENT INTO THE

2911
01:52:09,000 --> 01:52:09,480
STRATEGIC PLAN.

2912
01:52:09,480 --> 01:52:11,000
WE LOOK FORWARD TO RELEASING

2913
01:52:11,000 --> 01:52:12,160
THAT SOON.

2914
01:52:12,160 --> 01:52:14,640
AND WE WOULD ENCOURAGE YOU TO

2915
01:52:14,640 --> 01:52:15,840
CONTINUE SENDING ARTICLE

2916
01:52:15,840 --> 01:52:17,240
NOMINATIONS TO OUR OFFICE, TO

2917
01:52:17,240 --> 01:52:19,680
THE IACC SUMMARY OF ADVANCES OR

2918
01:52:19,680 --> 01:52:21,520
IF YOU'RE IN THE MIDDLE OF DOING

2919
01:52:21,520 --> 01:52:22,480
SOMETHING AND DON'T KNOW WHERE

2920
01:52:22,480 --> 01:52:24,120
THE E-MAIL IS YOU CAN SEND THEM

2921
01:52:24,120 --> 01:52:26,240
TO ME AND WE WILL GET THEM IN.

2922
01:52:26,240 --> 01:52:28,520
SO WE TAKE THEM ALL YEAR ROUND

2923
01:52:28,520 --> 01:52:30,720
AND SEND YOU REMINDERS QUARTERLY

2924
01:52:30,720 --> 01:52:31,680
FOR THOSE.

2925
01:52:31,680 --> 01:52:33,200
AND DID I SEE, WAS THERE A

2926
01:52:33,200 --> 01:52:34,640
COMMENT THAT SOMEBODY WAS TRYING

2927
01:52:34,640 --> 01:52:37,240
TO MAKE?

2928
01:52:37,240 --> 01:52:37,360
 

2929
01:52:37,360 --> 01:52:38,920
>>I DON'T SEE ONE, SUSAN.

2930
01:52:38,920 --> 01:52:39,640
>>OKAY.

2931
01:52:39,640 --> 01:52:40,840
SOMETHING FLASHED ON MY SCREEN,

2932
01:52:40,840 --> 01:52:42,600
I WASN'T SURE WHAT THAT WAS.

2933
01:52:42,600 --> 01:52:44,800
AND WE ALSO WILL BE DISCUSSING

2934
01:52:44,800 --> 01:52:46,440
NEW NOMINATIONS FOR THE IACC

2935
01:52:46,440 --> 01:52:48,960
SUMMARY OF ADVANCES IN OCTOBER,

2936
01:52:48,960 --> 01:52:52,800
AND SHARING WITH YOU THE 2022

2937
01:52:52,800 --> 01:52:53,200
PUBLICATION.

2938
01:52:53,200 --> 01:52:57,160
SO, WITH THAT, I BELIEVE WE CAN

2939
01:52:57,160 --> 01:52:57,920
CONCLUDE OUR IACC COMMITTEE

2940
01:52:57,920 --> 01:52:59,760
BUSINESS A LITTLE BIT EARLY AND

2941
01:52:59,760 --> 01:53:02,120
HAVE A LITTLE MORE TIME FOR

2942
01:53:02,120 --> 01:53:04,800
LUNCH.

2943
01:53:04,800 --> 01:53:08,200
SO WE WILL TAKE A BREAK UNTIL

2944
01:53:08,200 --> 01:53:08,560
1:00.

2945
01:53:08,560 --> 01:53:10,760
I BELIEVE WE'RE RIGHT AT ABOUT

2946
01:53:10,760 --> 01:53:11,480
NOON.

2947
01:53:11,480 --> 01:53:13,360
SO WE WILL HAVE A ONE-HOUR BREAK

2948
01:53:13,360 --> 01:53:15,640
AND WE'LL COME BACK PROMPTLY AT

2949
01:53:15,640 --> 01:53:17,720
1:00, AND TAKE OUR PUBLIC

2950
01:53:17,720 --> 01:53:19,920
COMMENTS AT THAT TIME.

2951
01:53:19,920 --> 01:53:22,080
SO, I HOPE EVERYONE ENJOYS YOUR

2952
01:53:22,080 --> 01:53:22,440
LUNCH.

2953
01:53:22,440 --> 01:53:23,720
THANK YOU SO MUCH FOR YOUR

2954
01:53:23,720 --> 01:53:25,320
PARTICIPATION IN OUR COMMITTEE

2955
01:53:25,320 --> 01:53:25,840
BUSINESS TODAY.

2956
01:53:25,840 --> 01:53:32,640
THANK YOU.

2957
01:53:32,640 --> 01:53:37,160
>>WELCOME BACK.

2958
01:53:37,160 --> 01:53:39,760
WE'RE YESTERDAYY TO START THE

2959
01:53:39,760 --> 01:53:50,880
PUBLIC COMMENT.

2960
01:53:50,880 --> 01:53:52,600
>>I LOOK FORWARD TO THE
PUBLIC

2961
01:53:52,600 --> 01:53:54,480
COMMENTS BUT I'LL TURN IT TO

2962
01:53:54,480 --> 01:53:59,160
SUSAN DANIELS TO INTRODUCE EACH

2963
01:53:59,160 --> 01:54:01,000
OF THE PUBLIC SPEAKERS AND ALSO

2964
01:54:01,000 --> 01:54:08,440
WHAT'S GOING TO HAPPEN DURING

2965
01:54:08,440 --> 01:54:10,960
THIS SESSION.

2966
01:54:10,960 --> 01:54:12,840
>>WE'LL START WITH ORAL
PUBLIC

2967
01:54:12,840 --> 01:54:13,120
COMMENTS.

2968
01:54:13,120 --> 01:54:14,640
WE WANT TO BE RESPECTFUL OF

2969
01:54:14,640 --> 01:54:16,600
EVERYONE AS THEY ARE GIVING

2970
01:54:16,600 --> 01:54:18,440
THEIR PUBLIC COMMENTS, AND WE

2971
01:54:18,440 --> 01:54:22,840
WILL LISTEN TO ORAL COMMENTS

2972
01:54:22,840 --> 01:54:24,360
FIRST AND WRITTEN COMMENTS AND

2973
01:54:24,360 --> 01:54:25,640
HAVE TIME FOR DISCUSSION.

2974
01:54:25,640 --> 01:54:35,280
WE'LL START WITH DR. GERALDINE

2975
01:54:35,280 --> 01:54:35,720
DAWSON ON THE LIST.

2976
01:54:35,720 --> 01:54:36,800
>>THANK YOU FOR THIS

2977
01:54:36,800 --> 01:54:38,760
OPPORTUNITY TO MAKE PUBLIC

2978
01:54:38,760 --> 01:54:43,160
COMMENTS AT THE INTERAGENCY

2979
01:54:43,160 --> 01:54:44,000
AUTISM COORDINATING COMMITTEE,

2980
01:54:44,000 --> 01:54:47,200
I'M PROFESSOR A DUKE UNIVERSITY,

2981
01:54:47,200 --> 01:54:53,200
DIRECTOR OF DUKE CENTER

2982
01:54:53,200 --> 01:54:55,720
I'D LIKE TO DRAW YOUR ATTENTION

2983
01:54:55,720 --> 01:54:59,200
TO A PROPOSAL TO MAKE TWO

2984
01:54:59,200 --> 01:55:04,760
CHANGES TO THE REQUIREMENTS FOR

2985
01:55:04,760 --> 01:55:06,640
PEDIATRIC RESIDENT TRAINING THAT

2986
01:55:06,640 --> 01:55:08,080
WOULD NEGATIVELY IMPACT CARE OF

2987
01:55:08,080 --> 01:55:09,040
PATIENTS AND FAMILIES.

2988
01:55:09,040 --> 01:55:10,800
I PROVIDED A LINK TO THE

2989
01:55:10,800 --> 01:55:12,640
PROPOSED CHANGES IN MY SUBMITTED

2990
01:55:12,640 --> 01:55:12,960
LETTER.

2991
01:55:12,960 --> 01:55:14,520
FIRST CHANGE WOULD REMOVE THE

2992
01:55:14,520 --> 01:55:23,280
CURRENT REQUIREMENT TO HAVE A

2993
01:55:23,280 --> 01:55:31,920
DEVELOPMENTAL BEHAVIORAL

2994
01:55:31,920 --> 01:55:32,880
PEDIATRICIAN, SECOND FOR

2995
01:55:32,880 --> 01:55:34,800
LONGITUDINAL CARE OF CHILDREN

2996
01:55:34,800 --> 01:55:37,720
WITH SPECIAL HEALTH CARE NEEDS.

2997
01:55:37,720 --> 01:55:41,120
THE U.S. HEALTH CARE SYSTEM IS

2998
01:55:41,120 --> 01:55:41,880
CURRENTLY INADEQUATE TO MEET

2999
01:55:41,880 --> 01:55:46,120
HEALTH CARE NEEDS OF AUTISTIC

3000
01:55:46,120 --> 01:55:47,680
INDIVIDUALS, PRIMARY CARE

3001
01:55:47,680 --> 01:55:49,120
PEDIATRICIAN PLAYS A CRUCIAL

3002
01:55:49,120 --> 01:55:52,160
ROLE IN SCREENING, REFERRAL FOR

3003
01:55:52,160 --> 01:55:54,360
DIAGNOSIS, AND ADDRESSING

3004
01:55:54,360 --> 01:55:56,520
SUBSTANTIAL HEALTH-RELATED

3005
01:55:56,520 --> 01:55:58,400
CHALLENGES ASSOCIATED WITH

3006
01:55:58,400 --> 01:56:00,920
AUTISM, INCLUDING INCREASED

3007
01:56:00,920 --> 01:56:02,440
NEUROLOGICAL, OPHTHALMOLOGICAL

3008
01:56:02,440 --> 01:56:03,360
AND GASTROINTESTINAL PROBLEMS,

3009
01:56:03,360 --> 01:56:04,640
AMONG OTHERS.

3010
01:56:04,640 --> 01:56:05,640
PRIMARY CARE PEDIATRICIANS ARE

3011
01:56:05,640 --> 01:56:07,720
THE MEDICAL HOME FOR AUTISTIC

3012
01:56:07,720 --> 01:56:10,000
CHILDREN AND ENTRY POINT FOR

3013
01:56:10,000 --> 01:56:11,960
EARLY DETECTION AND REFERRAL FOR

3014
01:56:11,960 --> 01:56:14,520
EVALUATION AND BEHAVIORAL AND

3015
01:56:14,520 --> 01:56:15,800
PHYSICAL HEALTH SERVICES.

3016
01:56:15,800 --> 01:56:18,640
MEDICAL TRAINING ABOUT PATIENTS

3017
01:56:18,640 --> 01:56:19,960
WITH AUTISM AND OTHER

3018
01:56:19,960 --> 01:56:20,960
NEURODEVELOPMENTAL CONDITIONS IS

3019
01:56:20,960 --> 01:56:25,320
ESSENTIAL FOR OUR FUTURE MEDICAL

3020
01:56:25,320 --> 01:56:26,360
WORKFORCE.

3021
01:56:26,360 --> 01:56:27,960
RESEARCH HAS DOCUMENTED

3022
01:56:27,960 --> 01:56:29,040
SUBSTANTIAL IMPACT OF

3023
01:56:29,040 --> 01:56:30,320
CO-OCCURRING MEDICAL CONDITIONS

3024
01:56:30,320 --> 01:56:33,200
ON QUALITY OF LIFE FOR AUTISTIC

3025
01:56:33,200 --> 01:56:34,760
INDIVIDUALS AND IMPORTANT ROLE

3026
01:56:34,760 --> 01:56:36,560
OF MEDICAL TRAINING IN

3027
01:56:36,560 --> 01:56:37,480
ADDRESSING THE COMPLEX HEALTH

3028
01:56:37,480 --> 01:56:43,840
CARE NEEDS OF AUTISTIC PATIENTS.

3029
01:56:43,840 --> 01:56:44,600
REMOVING REQUIREMENT FOR

3030
01:56:44,600 --> 01:56:46,880
ADEQUATE EXPOSURE TO PATIENTS

3031
01:56:46,880 --> 01:56:48,520
WITH NEURODEVELOPMENTAL

3032
01:56:48,520 --> 01:56:49,400
CONDITIONS AND OTHER SPECIAL

3033
01:56:49,400 --> 01:56:51,280
HEALTH CARE NEEDS IN MEDICAL

3034
01:56:51,280 --> 01:56:53,040
TRAINING WOULD REPRESENT A

3035
01:56:53,040 --> 01:56:54,760
SIGNIFICANT STEP BACKWARD FROM

3036
01:56:54,760 --> 01:56:56,080
REACHING THE GOAL OF MEETING

3037
01:56:56,080 --> 01:56:59,680
HEALTH CARE NEEDS OF AUTISTIC

3038
01:56:59,680 --> 01:57:00,600
INDIVIDUALS.

3039
01:57:00,600 --> 01:57:01,680
WITH SIGNIFICANT LONG-TERM

3040
01:57:01,680 --> 01:57:03,760
CONSEQUENCES FOR HEALTH, QUALITY

3041
01:57:03,760 --> 01:57:06,680
OF LIFE, AND MORTALITY IN

3042
01:57:06,680 --> 01:57:06,960
ADULTHOOD.

3043
01:57:06,960 --> 01:57:10,080
AS THE NATIONAL BODY THAT

3044
01:57:10,080 --> 01:57:11,640
OVERSEES RESEARCH, SERVICES, AND

3045
01:57:11,640 --> 01:57:12,840
POLICY RELATED TO IMPROVING

3046
01:57:12,840 --> 01:57:15,680
QUALITY OF LIFE FOR AUTISTIC

3047
01:57:15,680 --> 01:57:18,400
INDIVIDUALS, I URGE THE IACC TO

3048
01:57:18,400 --> 01:57:20,360
PROVIDE COMMENTS TO THE

3049
01:57:20,360 --> 01:57:22,160
ACCREDITATION COUNCIL ABOUT THIS

3050
01:57:22,160 --> 01:57:25,600
PROPOSAL WHICH CAN BE SUBMITTED

3051
01:57:25,600 --> 01:57:27,560
DIRECTLY AT THE WEBSITE, AND I

3052
01:57:27,560 --> 01:57:29,360
PROVIDED THIS WEBSITE IN MY

3053
01:57:29,360 --> 01:57:29,720
LETTER.

3054
01:57:29,720 --> 01:57:31,840
PLEASE NOTE THAT THE DEADLINE

3055
01:57:31,840 --> 01:57:37,240
FOR SUBMITTING THESE COMMENTS IS

3056
01:57:37,240 --> 01:57:38,640
TOMORROW, APRIL 5th, 2023.

3057
01:57:38,640 --> 01:57:41,040
THANK YOU AGAIN FOR ALLOWING ME

3058
01:57:41,040 --> 01:57:51,200
TO HAVE AN OPPORTUNITY TO

3059
01:57:51,200 --> 01:57:53,080
ADDRESS THE IACC.

3060
01:57:53,080 --> 01:57:56,480
>>GERRI IS A FORMER
MEMBER, AND

3061
01:57:56,480 --> 01:57:58,520
WE HAVE TWO TODAY GIVING ORAL

3062
01:57:58,520 --> 01:57:58,800
COMMENTS.

3063
01:57:58,800 --> 01:58:00,760
THANK YOU FOR BEING HERE.

3064
01:58:00,760 --> 01:58:01,760
WE'LL WAIT TO HAVE DISCUSSION

3065
01:58:01,760 --> 01:58:02,840
UNTIL THE DISCUSSION PERIOD.

3066
01:58:02,840 --> 01:58:07,840
WE'LL GO TO THE NEXT QUESTION,

3067
01:58:07,840 --> 01:58:10,600
THE NEXT COMMENTER, DR. MIYA

3068
01:58:10,600 --> 01:58:11,200
ASATO.

3069
01:58:11,200 --> 01:58:11,600
>>GOOD AFTERNOON.

3070
01:58:11,600 --> 01:58:15,040
THANK YOU FOR ALLOWING ME TO

3071
01:58:15,040 --> 01:58:16,480
SHARE SOME COMMENTS TODAY.

3072
01:58:16,480 --> 01:58:18,480
BY WAY OF INTRODUCTION, I AM THE

3073
01:58:18,480 --> 01:58:21,320
VICE PRESIDENT OF TRAINING AT

3074
01:58:21,320 --> 01:58:22,400
KENNEDY KRIEGER INSTITUTE IN

3075
01:58:22,400 --> 01:58:24,120
BALTIMORE, MARYLAND, AND I'M

3076
01:58:24,120 --> 01:58:28,760
ALSO THE DIRECTOR OF THE LEND

3077
01:58:28,760 --> 01:58:32,360
PROGRAM, LEADERSHIP EDUCATION IN

3078
01:58:32,360 --> 01:58:33,360
NEURODEVELOPMENTAL DISABILITIES

3079
01:58:33,360 --> 01:58:35,200
AT THE INSTITUTE.

3080
01:58:35,200 --> 01:58:38,080
I'M A PROFESSOR OF NEUROLOGY AND

3081
01:58:38,080 --> 01:58:38,960
PEDIATRICS AT JOHNS HOPKINS

3082
01:58:38,960 --> 01:58:41,680
SCHOOL OF MEDICINE, I DID A FULL

3083
01:58:41,680 --> 01:58:43,640
PEDIATRICS RESIDENCY AND THEN

3084
01:58:43,640 --> 01:58:46,960
TRAINED IN CHILD NEUROLOGY, MY

3085
01:58:46,960 --> 01:58:48,240
SPECIALTY IS IN

3086
01:58:48,240 --> 01:58:48,840
NEURODEVELOPMENTAL DISABILITIES,

3087
01:58:48,840 --> 01:58:54,080
I'M THE PROGRAM DIRECTOR FOR THE

3088
01:58:54,080 --> 01:58:54,680
NEURODEVELOPMENTAL DISABILITIES

3089
01:58:54,680 --> 01:58:56,240
RESIDENCE TRAINING PROGRAM AT

3090
01:58:56,240 --> 01:58:58,440
KENNEDY KRIEGER.

3091
01:58:58,440 --> 01:59:00,080
AS DR. DAWSON MENTIONED, REMOVAL

3092
01:59:00,080 --> 01:59:02,720
OF REQUIREMENTS TO HAVE A

3093
01:59:02,720 --> 01:59:03,400
DEVELOPMENTAL BEHAVIOR

3094
01:59:03,400 --> 01:59:05,320
PEDIATRICIAN AS PART OF THE

3095
01:59:05,320 --> 01:59:07,640
TRAINING FACULTY IN PEDIATRIC

3096
01:59:07,640 --> 01:59:09,680
RESIDENCY PROGRAMS IS REALLY

3097
01:59:09,680 --> 01:59:10,880
PERHAPS A REFLECTION OF THE

3098
01:59:10,880 --> 01:59:12,920
SHIFTING NEEDS OF PEDIATRICIANS

3099
01:59:12,920 --> 01:59:15,280
TO BE ABLE TO ADDRESS MORE

3100
01:59:15,280 --> 01:59:16,600
PSYCHIATRIC ISSUES THAN EVER

3101
01:59:16,600 --> 01:59:19,320
BEFORE, AND ALSO DUE TO THE

3102
01:59:19,320 --> 01:59:20,640
SHORTAGES OF DEVELOPMENTAL

3103
01:59:20,640 --> 01:59:22,720
BEHAVIORAL PEDIATRICS FACULTY ON

3104
01:59:22,720 --> 01:59:24,040
THE NATIONAL LEVEL.

3105
01:59:24,040 --> 01:59:27,440
SO THE ESSENCE OF PEDIATRICS

3106
01:59:27,440 --> 01:59:29,600
RESIDENCY TRAINING IS TO

3107
01:59:29,600 --> 01:59:31,040
UNDERSTAND AND TREAT THE

3108
01:59:31,040 --> 01:59:32,760
EMOTIONAL, PHYSICAL, AND

3109
01:59:32,760 --> 01:59:34,240
DEVELOPMENTAL NEEDS OF CHILDREN

3110
01:59:34,240 --> 01:59:36,440
FROM BIRTH TO THE TRANSITION TO

3111
01:59:36,440 --> 01:59:38,120
ADULT CARE.

3112
01:59:38,120 --> 01:59:39,880
AND SO, WITHOUT UNDERSTANDING

3113
01:59:39,880 --> 01:59:42,480
WHAT THE TEMPLATE IS OF WHAT IS

3114
01:59:42,480 --> 01:59:45,920
WITHIN THE WIDE RANGE OF WHAT IS

3115
01:59:45,920 --> 01:59:47,640
TYPICAL, THERE WILL BE A

3116
01:59:47,640 --> 01:59:50,040
FUNDAMENTAL SHIFT IN WHAT

3117
01:59:50,040 --> 01:59:53,000
PEDIATRICIANS KNOW ABOUT CHILD

3118
01:59:53,000 --> 01:59:54,920
DEVELOPMENT AND MAY CONSEQUENTLY

3119
01:59:54,920 --> 01:59:56,640
IMPACT I THINK THE DEVELOPMENTAL

3120
01:59:56,640 --> 01:59:58,400
HEALTH OF GENERATIONS OF FUTURE

3121
01:59:58,400 --> 02:00:00,240
CHILDREN, IF THIS CHANGE WERE TO

3122
02:00:00,240 --> 02:00:01,680
GO FORWARD.

3123
02:00:01,680 --> 02:00:04,080
AS WAS MENTIONED EARLIER,

3124
02:00:04,080 --> 02:00:05,400
PEDIATRICIANS PLAY A CRUCIAL

3125
02:00:05,400 --> 02:00:06,920
ROLE OF BEING THE MEDICAL HOME

3126
02:00:06,920 --> 02:00:09,520
BUT ALSO THE GATE KEEPERS.

3127
02:00:09,520 --> 02:00:11,360
SO, WITHOUT BEING TRAINED, WHAT

3128
02:00:11,360 --> 02:00:15,240
TO LOOK FOR, IN TERMS OF SIGNS

3129
02:00:15,240 --> 02:00:16,360
FOR POTENTIAL AUTISM,

3130
02:00:16,360 --> 02:00:18,280
INTELLECTUAL DISABILITY, OR

3131
02:00:18,280 --> 02:00:21,800
OTHER DISORDERS, WITHIN THE

3132
02:00:21,800 --> 02:00:23,400
CONTEXT OF PEDIATRIC OUTPATIENT

3133
02:00:23,400 --> 02:00:25,600
SETTINGS, PEDIATRICIANS WILL

3134
02:00:25,600 --> 02:00:27,280
CONTINUE TO FEEL UNCOMFORTABLE

3135
02:00:27,280 --> 02:00:28,480
ABOUT DEVELOPMENTAL ISSUES.

3136
02:00:28,480 --> 02:00:32,080
THIS IS ALL ALREADY A PROBLEM

3137
02:00:32,080 --> 02:00:34,520
ACROSS PEDIATRIC PRACTICES, AS

3138
02:00:34,520 --> 02:00:37,120
WELL AS PEDIATRIC SPECIALISTS.

3139
02:00:37,120 --> 02:00:40,400
AND BY DIMINISHING THE CENTRAL

3140
02:00:40,400 --> 02:00:41,520
FOCUS OF THE PEDIATRICS

3141
02:00:41,520 --> 02:00:42,160
RESIDENCY TRAINING, THEY

3142
02:00:42,160 --> 02:00:45,320
TYPICALLY GET A MONTH OF

3143
02:00:45,320 --> 02:00:46,440
DEVELOPMENTAL TRAINING, AND

3144
02:00:46,440 --> 02:00:49,760
SHIFTING THE BURDEN OF THIS

3145
02:00:49,760 --> 02:00:51,520
TRAINING TO OTHER PROFESSIONALS,

3146
02:00:51,520 --> 02:00:53,880
THIS MAY UNINTENTIONALLY CREATE

3147
02:00:53,880 --> 02:00:55,840
A GENERATION OF PEDIATRICIANS

3148
02:00:55,840 --> 02:00:58,160
WHO ARE UNPREPARED FOR THEIR

3149
02:00:58,160 --> 02:01:01,240
FUTURE ROLE IN DEVELOPMENTAL

3150
02:01:01,240 --> 02:01:01,880
SUPERVISION.

3151
02:01:01,880 --> 02:01:03,520
WITHOUT REQUIRING DEVELOPMENTAL

3152
02:01:03,520 --> 02:01:05,840
BEHAVIORAL PEDIATRICIANS TO BE

3153
02:01:05,840 --> 02:01:07,880
ROLE MODELS, AS TEACHERS, THE

3154
02:01:07,880 --> 02:01:09,080
POSITIONS FOR THESE FELLOWSHIPS

3155
02:01:09,080 --> 02:01:12,680
AS IT IS A FELLOWSHIP-TRAINED

3156
02:01:12,680 --> 02:01:19,040
POSITION, WILL CONTINUE TO BE

3157
02:01:19,040 --> 02:01:19,880
INJEOPARDY, IMPACTING THE FUTURE

3158
02:01:19,880 --> 02:01:22,040
TEACHING WORKFORCE.

3159
02:01:22,040 --> 02:01:22,800
[AUDIO DISTORTION]

3160
02:01:22,800 --> 02:01:25,440
BEING ASKED OF THEM THEY WILL

3161
02:01:25,440 --> 02:01:26,440
REFER TO OTHER SPECIALISTS,

3162
02:01:26,440 --> 02:01:27,640
CURRENTLY WHEN A PEDIATRICIAN IS

3163
02:01:27,640 --> 02:01:28,720
CONCERNED WHEN A CHILD IS

3164
02:01:28,720 --> 02:01:31,200
DELAYED OR MAY HAVE A DISORDER

3165
02:01:31,200 --> 02:01:33,880
SUCH AS AUTISM, THEY WILL OFTEN

3166
02:01:33,880 --> 02:01:35,160
REFER TO A DEVELOPMENTAL

3167
02:01:35,160 --> 02:01:36,920
PEDIATRICIAN OR TO A PHYSICIAN

3168
02:01:36,920 --> 02:01:39,640
SUCH AS MYSELF, ANOTHER

3169
02:01:39,640 --> 02:01:41,520
NEURODEVELOPMENTAL SPECIALIST.

3170
02:01:41,520 --> 02:01:44,480
IF THEY DON'T UNDERSTAND WHAT

3171
02:01:44,480 --> 02:01:45,280
DEVELOPMENTAL PEDIATRICIANS DO,

3172
02:01:45,280 --> 02:01:47,880
OR IF THERE'S NO WORKFORCE

3173
02:01:47,880 --> 02:01:48,840
AVAILABLE, THE REFERRAL PATTERN

3174
02:01:48,840 --> 02:01:50,160
WILL SHIFT TO OTHER PROFESSIONS

3175
02:01:50,160 --> 02:01:52,280
WHO MAY BE VERY UNPREPARED FOR

3176
02:01:52,280 --> 02:01:53,120
THIS CHANGE.

3177
02:01:53,120 --> 02:01:54,680
AND BY SHIFTING THIS ROLE TO

3178
02:01:54,680 --> 02:01:56,520
OTHERS, THIS WILL ALREADY ADD TO

3179
02:01:56,520 --> 02:01:58,800
THE VERY LONG WAIT TIMES, AND

3180
02:01:58,800 --> 02:02:01,000
MAY INCREASE AGE OF DIAGNOSIS OF

3181
02:02:01,000 --> 02:02:04,400
ASD AND DELAY THE START OF

3182
02:02:04,400 --> 02:02:04,680
SERVICES.

3183
02:02:04,680 --> 02:02:06,680
NOW, IT'S IMPORTANT TO NOTE IN

3184
02:02:06,680 --> 02:02:09,240
THE LANGUAGE THAT THE ACGME IS

3185
02:02:09,240 --> 02:02:10,440
MENTIONING IN THEIR PROPOSED

3186
02:02:10,440 --> 02:02:12,720
DOCUMENTS THAT THEY ARE

3187
02:02:12,720 --> 02:02:13,840
MENTIONING SOME ALTERNATE

3188
02:02:13,840 --> 02:02:16,000
PROFESSIONS WHO ARE NOT TRAINED

3189
02:02:16,000 --> 02:02:18,280
IN TYPICAL DEVELOPMENT, AND THEY

3190
02:02:18,280 --> 02:02:21,400
MAY HAVE A POOR AWARENESS OF THE

3191
02:02:21,400 --> 02:02:22,920
COMPLEXITIES OF THE VARIOUS

3192
02:02:22,920 --> 02:02:25,320
PEDIATRIC DISEASES WHICH MAY

3193
02:02:25,320 --> 02:02:26,400
ALTER DEVELOPMENTAL

3194
02:02:26,400 --> 02:02:26,840
TRAJECTORIES.

3195
02:02:26,840 --> 02:02:28,480
CHILDREN WITH MEDICAL

3196
02:02:28,480 --> 02:02:29,720
COMPLEXITIES AND THEIR FAMILIES

3197
02:02:29,720 --> 02:02:32,640
NEED THE COMBINED EXPERTISE OF

3198
02:02:32,640 --> 02:02:35,400
PEDIATRIC PHYSICIANS, AND

3199
02:02:35,400 --> 02:02:36,680
DEVELOPMENTAL KNOWLEDGE OF A

3200
02:02:36,680 --> 02:02:38,200
DEVELOPMENTAL SPECIALIST, SUCH

3201
02:02:38,200 --> 02:02:41,840
AS A DPP OR NDD SPECIALIST.

3202
02:02:41,840 --> 02:02:42,920
SO COMPREHENSIVE PROGRAMS SUCH

3203
02:02:42,920 --> 02:02:44,640
AS DOWN SYNDROME CENTERS ARE

3204
02:02:44,640 --> 02:02:46,320
OFTEN LED BY THESE TYPES OF

3205
02:02:46,320 --> 02:02:46,800
PROFESSIONALS.

3206
02:02:46,800 --> 02:02:49,080
THEY PROVIDE A MEDICAL HOME,

3207
02:02:49,080 --> 02:02:51,680
PROVIDE CARE SUPERVISION, AND

3208
02:02:51,680 --> 02:02:51,960
MANAGEMENT.

3209
02:02:51,960 --> 02:02:53,520
AND THESE CENTERS PLAY AN

3210
02:02:53,520 --> 02:02:54,720
IMPORTANT ROLE IN FORGING

3211
02:02:54,720 --> 02:02:56,280
PATHWAYS AND STANDARDS OF CARE

3212
02:02:56,280 --> 02:02:58,360
FOR TRANSITION TO ADULT SYSTEMS

3213
02:02:58,360 --> 02:03:00,560
WHICH REMAIN A SIGNIFICANT NEED

3214
02:03:00,560 --> 02:03:02,880
FOR MANY YOUNG ADULTS WITH

3215
02:03:02,880 --> 02:03:05,040
COMPLEX NEEDS AND DISABILITIES.

3216
02:03:05,040 --> 02:03:07,240
THE WORKFORCE AVAILABLE TO

3217
02:03:07,240 --> 02:03:08,560
ADDRESS PATIENTS -- PARENTS'

3218
02:03:08,560 --> 02:03:09,880
CONCERNS AROUND DEVELOPMENT IS

3219
02:03:09,880 --> 02:03:12,400
ALREADY AT A CRISIS POINT.

3220
02:03:12,400 --> 02:03:14,040
IF PEDIATRICIANS DON'T RECEIVE

3221
02:03:14,040 --> 02:03:14,920
ADEQUATE TRAINING AND

3222
02:03:14,920 --> 02:03:17,080
UNDERSTANDING THE COMPLEX NEEDS

3223
02:03:17,080 --> 02:03:18,920
OF CHILDHOOD DISABILITIES, IT IS

3224
02:03:18,920 --> 02:03:20,440
POSSIBLE THAT THE LIMITED

3225
02:03:20,440 --> 02:03:24,560
SERVICES AND SUPPORTS CHILDREN

3226
02:03:24,560 --> 02:03:26,000
CURRENTLY RECEIVE MAY BE UNDER

3227
02:03:26,000 --> 02:03:28,400
FURTHER PERIL DUE TO LIMITED

3228
02:03:28,400 --> 02:03:29,640
UNDERSTANDING OF CHRONICITY AND

3229
02:03:29,640 --> 02:03:31,120
EXTENT OF SERVICES CHILDREN WITH

3230
02:03:31,120 --> 02:03:33,480
DISABILITIES NEED IN BOTH

3231
02:03:33,480 --> 02:03:35,560
MEDICAL AND COMMUNITY SETTINGS.

3232
02:03:35,560 --> 02:03:39,480
SO IN CONCLUSION, I URGE THE

3233
02:03:39,480 --> 02:03:40,240
INTERAGENCY AUTISM COORDINATING

3234
02:03:40,240 --> 02:03:45,600
COMMITTEE TO  EXPRESS CONCERNS

3235
02:03:45,600 --> 02:03:47,120
AND CONSIDER ADVOCACY FOR

3236
02:03:47,120 --> 02:03:48,440
MECHANISMS SUCH AS FEDERAL AND

3237
02:03:48,440 --> 02:03:49,760
STATE FUNDING TO SUPPORT

3238
02:03:49,760 --> 02:03:51,040
EXISTING CLINICS TO IDENTIFY AND

3239
02:03:51,040 --> 02:03:53,680
TREAT CHILDREN WHO ARE AT RISK

3240
02:03:53,680 --> 02:03:56,880
FOR DEVELOPMENTAL DISORDERS.

3241
02:03:56,880 --> 02:03:57,960
DEVELOPMENTAL CLINICS DO NOT

3242
02:03:57,960 --> 02:04:00,800
FAREWELL IN TERMS OF METRICS, SO

3243
02:04:00,800 --> 02:04:01,720
CONSIDERATION OF JOINT FUNDING

3244
02:04:01,720 --> 02:04:06,440
RESOURCES SHOULD BE CONSIDERED

3245
02:04:06,440 --> 02:04:10,280
AS POTENTIAL PECK  -- MECHANISMO

3246
02:04:10,280 --> 02:04:11,680
SUPPORT CARE.

3247
02:04:11,680 --> 02:04:14,200
THANK YOU FOR YOUR ATTENTION.

3248
02:04:14,200 --> 02:04:16,520
>>THANK YOU.

3249
02:04:16,520 --> 02:04:27,080
NEXT COMMENTER IS ANTHONY TUCCI.

3250
02:04:27,880 --> 02:04:28,960
>>THANK YOU FOR THE
OPPORTUNITY

3251
02:04:28,960 --> 02:04:30,080
TO SUBMIT COMMENTS TODAY.

3252
02:04:30,080 --> 02:04:32,160
I'M A PARENT OF A 19-YEAR-OLD

3253
02:04:32,160 --> 02:04:35,000
SON WHO HAS AUTISM, AND IS A

3254
02:04:35,000 --> 02:04:35,360
NON-SPEAKER.

3255
02:04:35,360 --> 02:04:36,760
I'M AN ADVOCATE FOR THE RIGHTS

3256
02:04:36,760 --> 02:04:39,400
OF ALL PEOPLE WITH ASD, AND I'M

3257
02:04:39,400 --> 02:04:41,800
STRONGLY COMMITTED TO LEARNING

3258
02:04:41,800 --> 02:04:44,640
ABOUT AUTISM RESEARCH AND

3259
02:04:44,640 --> 02:04:46,160
EVIDENCE-BASED INTERVENTIONS.

3260
02:04:46,160 --> 02:04:48,680
I'M OFFERING COMMENTS AROUND TWO

3261
02:04:48,680 --> 02:04:50,200
MAIN THEMES THIS AFTERNOON.

3262
02:04:50,200 --> 02:04:52,600
THINK NUMBER ONE WE NEED MORE

3263
02:04:52,600 --> 02:04:55,800
RESEARCH THAT PROMOTES EFFECTIVE

3264
02:04:55,800 --> 02:04:56,640
INTERVENTIONS LED BY INDEPENDENT

3265
02:04:56,640 --> 02:05:02,160
AND QUALIFIED TEAMS OF

3266
02:05:02,160 --> 02:05:02,640
MULTI-DISCIPLINARY AND

3267
02:05:02,640 --> 02:05:04,320
INTRADISCIPLINARY RESEARCHERS.

3268
02:05:04,320 --> 02:05:07,520
LACK OF RESEARCH DELAYS

3269
02:05:07,520 --> 02:05:08,360
EFFECTIVE INTERVENTIONS AND

3270
02:05:08,360 --> 02:05:10,480
POSSIBLE CONFIRMATION THAT PRIOR

3271
02:05:10,480 --> 02:05:11,680
FINDINGS WERE INACCURATE.

3272
02:05:11,680 --> 02:05:17,000
IT IS MY STRONG BELIEF THAT

3273
02:05:17,000 --> 02:05:17,480
MULTI-DISCIPLINARY AND

3274
02:05:17,480 --> 02:05:18,000
INTERDISCIPLINARY RESEARCH

3275
02:05:18,000 --> 02:05:21,200
APPROACH TO RESEARCH OFFERS THE

3276
02:05:21,200 --> 02:05:23,280
BEST OPPORTUNITIES TO

3277
02:05:23,280 --> 02:05:24,840
EFFECTIVELY UNDERSTAND THE

3278
02:05:24,840 --> 02:05:27,360
COMMUNICATIONS OF INDIVIDUALS

3279
02:05:27,360 --> 02:05:29,520
WITH ASD.

3280
02:05:29,520 --> 02:05:31,200
THE NCCIH HAS OFFERED AMAZING

3281
02:05:31,200 --> 02:05:35,760
INSIGHT ON VALUE OF USING A

3282
02:05:35,760 --> 02:05:36,680
CROSS-DISCIPLINARY APPROACH TO

3283
02:05:36,680 --> 02:05:38,640
DRAW A BRIDGE BETWEEN THE

3284
02:05:38,640 --> 02:05:40,840
DEEP-ROOTED SILOS IN THE FIELD

3285
02:05:40,840 --> 02:05:45,200
OF MEDICINE AND HEALTH.

3286
02:05:45,200 --> 02:05:47,600
IACC'S 2023 STRATEGIC PLAN

3287
02:05:47,600 --> 02:05:48,600
MASTERFULLY CALLS FOR

3288
02:05:48,600 --> 02:05:51,680
RESEARCHERS TO DEVELOP NEW

3289
02:05:51,680 --> 02:05:54,200
APPROACHES AND TECHNOLOGIES TO

3290
02:05:54,200 --> 02:05:55,280
HELP INDIVIDUALS WITH

3291
02:05:55,280 --> 02:05:58,200
COMMUNICATION CHALLENGES, AND TO

3292
02:05:58,200 --> 02:06:01,640
DELIVER INNOVATIVE SCIENTIFIC

3293
02:06:01,640 --> 02:06:02,480
RESEARCH WHILE FOSTERING

3294
02:06:02,480 --> 02:06:02,960
COLLABORATION.

3295
02:06:02,960 --> 02:06:06,560
THIS STRATEGIC PLAN IS PERFECTLY

3296
02:06:06,560 --> 02:06:09,520
CALIBRATED TO EFFECTIVELY --

3297
02:06:09,520 --> 02:06:11,120
[ NO AUDIO ] 

3298
02:06:11,120 --> 02:06:15,440
>>SEEMS WE HAVE A
TECHNICAL

3299
02:06:15,440 --> 02:06:25,680
DIFFICULTY FOR OUR SPEAKER. 

3300
02:06:25,680 --> 02:06:36,240
LET'S SEE IF CAN HE LOG BACK ON.

3301
02:06:51,040 --> 02:06:52,960
NOT SEEING HIM.

3302
02:06:52,960 --> 02:06:54,840
MAYBE WE WILL GO TO THE NEXT

3303
02:06:54,840 --> 02:06:58,160
SPEAKER AND COME BACK TO

3304
02:06:58,160 --> 02:06:59,360
MR. TUCCI WHEN HE'S ABLE TO LOG

3305
02:06:59,360 --> 02:07:00,120
BACK ON.

3306
02:07:00,120 --> 02:07:02,800
HE SEEMED LIKE HAD HE A BAD

3307
02:07:02,800 --> 02:07:03,240
CONNECTION.

3308
02:07:03,240 --> 02:07:04,920
ALL RIGHT.

3309
02:07:04,920 --> 02:07:10,600
SO WE'LL NEXT HAVE CHRIS BANKS,

3310
02:07:10,600 --> 02:07:11,200
FROM AUTISM SOCIETY.

3311
02:07:11,200 --> 02:07:13,040
>>THANK YOU FOR ALLOWING
ME TO

3312
02:07:13,040 --> 02:07:16,160
SPEAK BEFORE THE IACC TODAY.

3313
02:07:16,160 --> 02:07:17,080
I'M CHRISTOPHER BANKS, PRESIDENT

3314
02:07:17,080 --> 02:07:21,320
AND CEO OF AUTISM SOCIETY OF

3315
02:07:21,320 --> 02:07:21,640
AMERICA.

3316
02:07:21,640 --> 02:07:24,160
THIS APRIL SOCIETY IS PROUD TO

3317
02:07:24,160 --> 02:07:25,840
CONTINUE ITS FIFTH ANNUAL

3318
02:07:25,840 --> 02:07:27,160
CELEBRATE DIFFERENCES CAMPAIGN

3319
02:07:27,160 --> 02:07:28,320
IN HONOR OF AUTISM ACCEPTANCE

3320
02:07:28,320 --> 02:07:28,560
MONTH.

3321
02:07:28,560 --> 02:07:33,240
EVERY DAY WE WORK TO CREATE

3322
02:07:33,240 --> 02:07:33,760
CONNECTIONS.

3323
02:07:33,760 --> 02:07:35,880
EMPOWERING PEOPLE IN THE AUTISM

3324
02:07:35,880 --> 02:07:37,520
COMMUNITY TO LIVE FULLY.

3325
02:07:37,520 --> 02:07:38,400
WE BELIEVE ACCEPTANCE IS

3326
02:07:38,400 --> 02:07:40,120
CREATING A WORLD WHERE EVERYONE

3327
02:07:40,120 --> 02:07:42,080
IN THE AUTISM COMMUNITY IS

3328
02:07:42,080 --> 02:07:43,640
CONNECTED TO THIS, WHAT THEY

3329
02:07:43,640 --> 02:07:46,480
NEED, WHEN THEY NEED IT.

3330
02:07:46,480 --> 02:07:49,680
AND BY EVERYONE.

3331
02:07:49,680 --> 02:07:54,120
WE MEAN EVERY UNIQUE INDIVIDUAL,

3332
02:07:54,120 --> 02:07:54,720
IMPLACABLE, IMMUTABLE.

3333
02:07:54,720 --> 02:07:55,360
IRREPLACEABLE VIEW.

3334
02:07:55,360 --> 02:07:57,000
I WOULD LIKE TO SHARE AN

3335
02:07:57,000 --> 02:07:59,400
OVERVIEW OF HEALTH EQUITY WORK

3336
02:07:59,400 --> 02:08:02,720
AND HIGHLIGHT OUR PROGRAMMATIC

3337
02:08:02,720 --> 02:08:03,960
IMPACT AROUND ACCESSIBLE

3338
02:08:03,960 --> 02:08:04,680
VACCINATIONS.

3339
02:08:04,680 --> 02:08:06,040
HEALTH EQUITY IS FOUNDATION FOR

3340
02:08:06,040 --> 02:08:08,480
A HEALTHY LIFE.

3341
02:08:08,480 --> 02:08:12,440
AUTISM COMMUNITY FACES UNIQUE

3342
02:08:12,440 --> 02:08:14,440
BARRIERS TO ACCESSING CARE.

3343
02:08:14,440 --> 02:08:15,720
RESULTING IN HEALTH CARE

3344
02:08:15,720 --> 02:08:17,160
INEQUITIES WHICH ARE EXACERBATED

3345
02:08:17,160 --> 02:08:21,280
BY SOCIAL AND ECONOMIC FACTORS.

3346
02:08:21,280 --> 02:08:22,640
THESE INEQUITIES CAN RESULT IN

3347
02:08:22,640 --> 02:08:23,600
DIFFERENCES IN LENGTH AND

3348
02:08:23,600 --> 02:08:25,800
QUALITY OF LIFE, DISEASE RATES,

3349
02:08:25,800 --> 02:08:28,320
ACCESS TO TREATMENT, DISABILITY,

3350
02:08:28,320 --> 02:08:31,720
AND DEATH.

3351
02:08:31,720 --> 02:08:33,400
TOO OFTEN BARRIERS CARE ARE

3352
02:08:33,400 --> 02:08:38,680
VIEWEDDED  AS PATIENT BARRIERS N

3353
02:08:38,680 --> 02:08:40,160
THEY ARE SYSTEMS BARRIERS

3354
02:08:40,160 --> 02:08:42,880
CONTRIBUTING TO TRUST BARRIERS,

3355
02:08:42,880 --> 02:08:44,400
TO REALIZE HEALTH EQUITY WE MUST

3356
02:08:44,400 --> 02:08:46,720
WORK TOGETHER TO REDUCE BARRIERS

3357
02:08:46,720 --> 02:08:48,600
AND CREATE ACCESSIBLE SOLUTIONS.

3358
02:08:48,600 --> 02:08:50,440
IN 2021 THE AUTISM SOCIETY

3359
02:08:50,440 --> 02:08:53,480
RECEIVED FUNDING FROM THE CDC

3360
02:08:53,480 --> 02:08:56,120
THROUGH A SUBGRANT TO ADDRESS

3361
02:08:56,120 --> 02:08:56,800
VACCINE HESITANCY, A

3362
02:08:56,800 --> 02:08:58,200
LONGSTANDING ISSUE WITHIN THE

3363
02:08:58,200 --> 02:08:59,640
AUTISM COMMUNITY THAT HAS

3364
02:08:59,640 --> 02:09:01,800
PERPETUATED BY ACCESS TO

3365
02:09:01,800 --> 02:09:03,880
BARRIERS AND TRUST BARRIERS.

3366
02:09:03,880 --> 02:09:06,840
AUTISM SOCIETY DEVELOPED ITS

3367
02:09:06,840 --> 02:09:07,960
VACCINE EDUCATION INITIATIVE,

3368
02:09:07,960 --> 02:09:10,760
VEI, TO ADVANCE THROUGH A FOCUS

3369
02:09:10,760 --> 02:09:13,720
ON EDUCATION, COMPETENCE,

3370
02:09:13,720 --> 02:09:14,040
ACCESSIBILITY.

3371
02:09:14,040 --> 02:09:16,920
THE VEI IS TAILORED PUBLIC

3372
02:09:16,920 --> 02:09:18,440
HEALTH MODEEL THAT REDUCES

3373
02:09:18,440 --> 02:09:20,960
BARRIERS FACED BY THE AUTISM

3374
02:09:20,960 --> 02:09:22,640
COMMUNITY BY SUPPORTING AUTISTIC

3375
02:09:22,640 --> 02:09:23,240
INDIVIDUALS, FAMILIES,

3376
02:09:23,240 --> 02:09:27,080
CAREGIVERS, HEALTH CARE

3377
02:09:27,080 --> 02:09:28,920
PROVIDERS AND SYSTEMS.

3378
02:09:28,920 --> 02:09:31,320
WE HAVE 12 AFFILIATES TO LEARN

3379
02:09:31,320 --> 02:09:34,200
FROM OUR COMMUNITY, IDENTIFY

3380
02:09:34,200 --> 02:09:35,080
BEST PRACTICES, TRAIN

3381
02:09:35,080 --> 02:09:36,160
PROFESSIONALS, SUPPORT

3382
02:09:36,160 --> 02:09:38,240
INDIVIDUALS, AND FAMILIES, FOR

3383
02:09:38,240 --> 02:09:40,200
IMPROVED VACCINE EXPERIENCE.

3384
02:09:40,200 --> 02:09:42,080
WE HAVE AN OPPORTUNITY IMPACT

3385
02:09:42,080 --> 02:09:43,800
LASTING CHANGE BY PROMOTING

3386
02:09:43,800 --> 02:09:45,120
VACCINE EDUCATION WITHIN THE

3387
02:09:45,120 --> 02:09:47,600
AUTISM AND DISABILITY COMMUNITY,

3388
02:09:47,600 --> 02:09:49,280
SO THAT INDIVIDUALS, FAMILIES

3389
02:09:49,280 --> 02:09:50,480
AND CAREGIVERS ARE EMPOWERED

3390
02:09:50,480 --> 02:09:53,080
WITH KNOWLEDGE THEY NEED TO MAKE

3391
02:09:53,080 --> 02:09:53,640
INFORMED DECISIONS.

3392
02:09:53,640 --> 02:09:55,400
EQUIPPING HEALTH CARE PROVIDERS

3393
02:09:55,400 --> 02:09:56,280
WITH TRAINING, RESOURCES THEY

3394
02:09:56,280 --> 02:09:57,920
NEED TO MEET UNIQUE AND DIVERSE

3395
02:09:57,920 --> 02:10:00,800
HEALTH CARE NEEDS IN THE AUTISM

3396
02:10:00,800 --> 02:10:03,080
COMMUNITY WHICH SUPPORTS

3397
02:10:03,080 --> 02:10:04,080
UNIVERSAL ACCESSIBILITY.

3398
02:10:04,080 --> 02:10:05,360
CREATING COMMUNITY CONNECTIONS

3399
02:10:05,360 --> 02:10:09,640
THAT LEAD TO IMPROVED PATIENT

3400
02:10:09,640 --> 02:10:10,320
PROVIDER CONFIDENCE,

3401
02:10:10,320 --> 02:10:10,920
COMMUNICATION, INTERACTION,

3402
02:10:10,920 --> 02:10:11,400
OUTCOMES.

3403
02:10:11,400 --> 02:10:12,720
WE'RE HAPPY TO REPORT EARLIER

3404
02:10:12,720 --> 02:10:14,360
THIS YEAR RECEIVED ADDITIONAL

3405
02:10:14,360 --> 02:10:15,440
FUNDING THROUGH THE

3406
02:10:15,440 --> 02:10:16,360
ADMINISTRATION FOR COMMUNITY

3407
02:10:16,360 --> 02:10:17,840
LIVING, WORKING WITH U.S. AGING,

3408
02:10:17,840 --> 02:10:20,920
THAT WILL ALLOW US TO EXPAND

3409
02:10:20,920 --> 02:10:24,080
D.E.I. PROGRAM WITHIN OUR

3410
02:10:24,080 --> 02:10:26,040
NETWORK OF 70 AFFILIATES, 34

3411
02:10:26,040 --> 02:10:30,080
STATES, IN THE GREATER SCOPE OF

3412
02:10:30,080 --> 02:10:32,480
EQUITY FOCUS SPOTLIGHTING CRISIS

3413
02:10:32,480 --> 02:10:35,120
OF UNDERPAID AND UNDERSTAFFED

3414
02:10:35,120 --> 02:10:35,920
DIRECT SUPPORT PROFESSIONALS,

3415
02:10:35,920 --> 02:10:38,160
INEQUITABLE ACCESS TO HOME AND

3416
02:10:38,160 --> 02:10:43,320
COMMUNITY-BASED SERVICES AND

3417
02:10:43,320 --> 02:10:45,400
SYSTEMATIC BARRIERS AMONG

3418
02:10:45,400 --> 02:10:49,400
PRIORITIES THAT IMPACT AUTISTIC

3419
02:10:49,400 --> 02:10:50,960
AMERICANS.

3420
02:10:50,960 --> 02:10:52,520
WE WAS PREVIOUSLY REMARKED AT A

3421
02:10:52,520 --> 02:10:54,400
PREVIOUS MEETING WITH THIS GROUP

3422
02:10:54,400 --> 02:10:56,040
ON THE CRISIS IN OUR SERVICE

3423
02:10:56,040 --> 02:10:57,000
CENTERS, WE'LL CONTINUE THROUGH

3424
02:10:57,000 --> 02:10:58,560
THE PUBLIC POLICY EFFORTS AND

3425
02:10:58,560 --> 02:11:00,000
NATIONAL PROGRAMS TO ADDRESS

3426
02:11:00,000 --> 02:11:03,160
NEEDS OF PEOPLE IN THE AUTISM

3427
02:11:03,160 --> 02:11:05,800
COMMUNITY, OTHER AREAS OF HEALTH

3428
02:11:05,800 --> 02:11:08,520
EQUITY INCLUDE MENTAL HEALTH,

3429
02:11:08,520 --> 02:11:10,600
SUICIDE PREVENTION, LAW

3430
02:11:10,600 --> 02:11:13,280
ENFORCEMENT TRAINING, AND FIRST

3431
02:11:13,280 --> 02:11:14,840
RESPONDER TRAINING.

3432
02:11:14,840 --> 02:11:18,720
LASTLY, I WANT TO ECHO CONCERNS

3433
02:11:18,720 --> 02:11:19,440
PREVIOUSLY PROVIDED TODAY

3434
02:11:19,440 --> 02:11:22,160
REGARDING ISSUE OF TRAINING FOR

3435
02:11:22,160 --> 02:11:24,760
MEDICAL PROFESSIONALS TO WORK

3436
02:11:24,760 --> 02:11:27,000
WITH PEOPLE WITH AUTISM.

3437
02:11:27,000 --> 02:11:28,320
IMPROVED TRAINING FOR HEALTH

3438
02:11:28,320 --> 02:11:30,040
CARE PROFESSIONALS IS A CORE

3439
02:11:30,040 --> 02:11:32,000
NEED THAT HAS EMERGED OUT OF OUR

3440
02:11:32,000 --> 02:11:33,200
HEALTH EQUITY WORK.

3441
02:11:33,200 --> 02:11:35,160
AS OTHERS HAVE MENTIONED, THE

3442
02:11:35,160 --> 02:11:38,480
RECENT CHANGES IN THE PEDIATRIC

3443
02:11:38,480 --> 02:11:39,600
RESIDENCY EDUCATION PROPOSED BY

3444
02:11:39,600 --> 02:11:40,680
ACCREDITATION COUNCIL FOR

3445
02:11:40,680 --> 02:11:44,080
GRADUATE MEDICAL EDUCATION WILL

3446
02:11:44,080 --> 02:11:51,120
RESULT IN EVEN FEWER

3447
02:11:51,120 --> 02:11:52,320
DEVELOPMENTAL PEDIATRICIANS TO

3448
02:11:52,320 --> 02:11:53,320
SCREEN AUTISM AND DISABILITIES

3449
02:11:53,320 --> 02:11:54,720
TO ACHIEVE FULL HEALTH

3450
02:11:54,720 --> 02:11:55,000
PROFESSION.

3451
02:11:55,000 --> 02:11:56,920
THE SOCIETY WILL BE PROVIDING

3452
02:11:56,920 --> 02:11:58,760
COMMENTS TO OPPOSE THESE

3453
02:11:58,760 --> 02:11:59,120
CHANGES.

3454
02:11:59,120 --> 02:12:01,200
STAKEHOLDERS HAVE UNTIL APRIL

3455
02:12:01,200 --> 02:12:04,160
5th TO PROVIDE FEEDBACK ON A

3456
02:12:04,160 --> 02:12:07,560
PROPOSAL AND BRING ABOUT COURSE

3457
02:12:07,560 --> 02:12:08,080
CORRECTION.

3458
02:12:08,080 --> 02:12:08,760
AUTISM ACCEPTANCE MONTH, ALL

3459
02:12:08,760 --> 02:12:10,920
SOCIETY OF AMERICA WILL

3460
02:12:10,920 --> 02:12:12,880
HIGHLIGHT ITS WORK TO IMPACT AND

3461
02:12:12,880 --> 02:12:15,280
ENSURE ACCESSIBLE EXPERIENCES IN

3462
02:12:15,280 --> 02:12:16,720
HEALTH CARE AND OTHER SOCIAL

3463
02:12:16,720 --> 02:12:17,600
DETERMINANTS OF HEALTH.

3464
02:12:17,600 --> 02:12:19,560
I THANK YOU ALL FOR ALLOWING ME

3465
02:12:19,560 --> 02:12:24,040
TO COVER THESE IMPORTANT TOPICS

3466
02:12:24,040 --> 02:12:24,240
TODAY.

3467
02:12:24,240 --> 02:12:27,560
>>THANK YOU SO MUCH FOR
THOSE

3468
02:12:27,560 --> 02:12:29,200
COMMENTS, MR. BANKS.

3469
02:12:29,200 --> 02:12:39,680
AND NEXT I'D LIKE TO WELCOME

3470
02:12:40,440 --> 02:12:41,680
BACK IDIL ABDULL.

3471
02:12:41,680 --> 02:12:43,640
>>GOOD AFTERNOON.

3472
02:12:43,640 --> 02:12:45,160
DEAR MR. CHAIRMAN, MANY THANKS

3473
02:12:45,160 --> 02:12:48,800
FOR THE OPPORTUNITY TO SPEAK

3474
02:12:48,800 --> 02:12:49,000
TODAY.

3475
02:12:49,000 --> 02:12:52,080
I AM A AUTISM MOM AND RETIRING

3476
02:12:52,080 --> 02:12:52,400
ADVOCATE.

3477
02:12:52,400 --> 02:12:54,360
FIRST I WOULD THANK DR. DANIELS

3478
02:12:54,360 --> 02:12:57,520
FOR HER SUPPORT AND GUIDANCE IN

3479
02:12:57,520 --> 02:12:59,160
THE SOMALI AUTISM COMMUNITY IN

3480
02:12:59,160 --> 02:13:01,160
MINNESOTA AS WELL AS ALL AUTISM

3481
02:13:01,160 --> 02:13:02,720
FAMILIES ACROSS THE NATION.

3482
02:13:02,720 --> 02:13:03,920
I WAS LUCKY ENOUGH AS DR.

3483
02:13:03,920 --> 02:13:06,800
DANIELS SAID TO BE PART OF IACC

3484
02:13:06,800 --> 02:13:10,160
ALMOST A DECADE AGO NOW, MY

3485
02:13:10,160 --> 02:13:11,240
GOODNESS.

3486
02:13:11,240 --> 02:13:12,520
WE'VE MADE A LOT OF PROGRESS

3487
02:13:12,520 --> 02:13:17,880
BACK THEN, AND YOU ALL  NOW HAVE

3488
02:13:17,880 --> 02:13:18,640
MADE MORE PROGRESS.

3489
02:13:18,640 --> 02:13:21,160
THERE ARE TWO AREAS WE STILL

3490
02:13:21,160 --> 02:13:22,160
NEED MORE WORK AND SUPPORT,

3491
02:13:22,160 --> 02:13:23,120
HOWEVER.

3492
02:13:23,120 --> 02:13:25,120
LET ME START WITH ADULT

3493
02:13:25,120 --> 02:13:25,800
SERVICES.

3494
02:13:25,800 --> 02:13:27,880
MY SON NOW IS 20 YEARS OLD, WILL

3495
02:13:27,880 --> 02:13:33,880
BE 21 IN JULY OF THIS YEAR.

3496
02:13:33,880 --> 02:13:35,560
THERE ARE ALMOST NO SERVICES FOR

3497
02:13:35,560 --> 02:13:37,160
ADULTS WITH AUTISM IN MINNESOTA

3498
02:13:37,160 --> 02:13:37,760
AND NATIONWIDE.

3499
02:13:37,760 --> 02:13:38,960
OUR CHILDREN GROW AND BECOME

3500
02:13:38,960 --> 02:13:40,920
ADULTS BUT WE AS A NATION ARE

3501
02:13:40,920 --> 02:13:43,000
NOT READY FOR THEM.

3502
02:13:43,000 --> 02:13:45,160
THE SYSTEM IS SIMPLY NOT SET UP

3503
02:13:45,160 --> 02:13:46,800
FOR ADULTS WITH AUTISM FROM

3504
02:13:46,800 --> 02:13:49,080
EMPLOYMENT TO HOUSING, TO

3505
02:13:49,080 --> 02:13:50,400
SAFETY, AND IN BETWEEN.

3506
02:13:50,400 --> 02:13:51,840
ONE OF MY BIGGEST WORRIES IN

3507
02:13:51,840 --> 02:13:54,240
LIFE IS WHO WILL CARE FOR MY SON

3508
02:13:54,240 --> 02:13:56,000
WHEN I'M NO LONGER HERE.

3509
02:13:56,000 --> 02:13:58,680
I WANT TO ASK IACC MEMBERS

3510
02:13:58,680 --> 02:14:01,120
PARTICULARLY THE FEDERAL

3511
02:14:01,120 --> 02:14:02,120
AGENCIES THAT OVERSEE ADULT

3512
02:14:02,120 --> 02:14:03,880
SERVICES TO CONCENTRATE MORE ON

3513
02:14:03,880 --> 02:14:05,640
NOT JUST RESEARCH BUT ON

3514
02:14:05,640 --> 02:14:08,160
SERVICES AND SUPPORT FOR ADULTS

3515
02:14:08,160 --> 02:14:12,320
WITH AUTISM, THEY WILL NEED

3516
02:14:12,320 --> 02:14:13,760
HOUSING THAT IS CULTURALLY

3517
02:14:13,760 --> 02:14:15,720
RESPONSIVE AND EMPLOYMENT THAT'S

3518
02:14:15,720 --> 02:14:16,600
FULFILLING AND REWARDING.

3519
02:14:16,600 --> 02:14:19,880
THEY WILL ALSO NEED TO BE SAFE

3520
02:14:19,880 --> 02:14:21,400
IN THEIR COMMUNITIES, INCLUDING

3521
02:14:21,400 --> 02:14:22,400
WITH LAW ENFORCEMENT.

3522
02:14:22,400 --> 02:14:25,880
WE MUST MAKE SURE ADULTS WITH

3523
02:14:25,880 --> 02:14:28,400
AUTISM ARE ABLE TO LIVE AND WORK

3524
02:14:28,400 --> 02:14:29,200
SAFELY WITH DIGNITY AND RESPECT

3525
02:14:29,200 --> 02:14:30,400
IN THEIR COMMUNITIES.

3526
02:14:30,400 --> 02:14:32,880
MY SECOND REQUEST IS ABOUT THE

3527
02:14:32,880 --> 02:14:36,000
ABILITY TO COMMUNICATE, AS YOU

3528
02:14:36,000 --> 02:14:38,280
MAY HAVE HEARD SOMALIS ARE AN

3529
02:14:38,280 --> 02:14:40,800
ORAL SOCIETY, SADLY MOST OF OUR

3530
02:14:40,800 --> 02:14:43,160
CHILDREN INCLUDING MY SON HAVE

3531
02:14:43,160 --> 02:14:43,880
NON-VERBAL AUTISM.

3532
02:14:43,880 --> 02:14:45,520
IN OTHER WORDS, AUTISM IS

3533
02:14:45,520 --> 02:14:47,920
SILENCING A NATION OF POETS,

3534
02:14:47,920 --> 02:14:51,160
KNOWN FOR THEIR ORAL

3535
02:14:51,160 --> 02:14:52,520
COMMUNICATION.

3536
02:14:52,520 --> 02:14:55,360
I THANK DR. KASARI OUT OF UCLA

3537
02:14:55,360 --> 02:14:57,080
AND DR. HELEN OUT OF BOSTON

3538
02:14:57,080 --> 02:15:01,680
UNIVERSITY BUT WE NEED MORE

3539
02:15:01,680 --> 02:15:04,440
RESEARCH TEACHING KIDS TO

3540
02:15:04,440 --> 02:15:12,920
COMMUNICATE FROM THEIR HEARTS,

3541
02:15:12,920 --> 02:15:14,120
MINDS, VIA SPELLING.

3542
02:15:14,120 --> 02:15:15,720
THERE IS A LIMITED SYSTEM.

3543
02:15:15,720 --> 02:15:18,920
I ASK IACC TO RAISE AWARENESS OF

3544
02:15:18,920 --> 02:15:21,320
THE SPELL TO COMMUNICATE METHOD,

3545
02:15:21,320 --> 02:15:24,280
TO HAVE INSURANCE COMPANIES AND

3546
02:15:24,280 --> 02:15:26,400
MEDICAID VIA CMS COVERAGE AND TO

3547
02:15:26,400 --> 02:15:28,880
ENSURE WE'RE GETTING EVERY

3548
02:15:28,880 --> 02:15:29,840
INDIVIDUAL WITH AUTISM THE

3549
02:15:29,840 --> 02:15:32,040
OPPORTUNITY TO BE ABLE TO TELL,

3550
02:15:32,040 --> 02:15:34,040
TO SAY, WHAT THEY WANT, WHAT

3551
02:15:34,040 --> 02:15:35,320
THEY NEED, WHAT THEY ARE

3552
02:15:35,320 --> 02:15:38,200
THINKING AND TELL US THEIR

3553
02:15:38,200 --> 02:15:38,800
DREAMS.

3554
02:15:38,800 --> 02:15:40,280
I WOULD GIVE EVERY ORGAN IN MY

3555
02:15:40,280 --> 02:15:43,080
BODY FOR MY SON TO BE ABLE TO

3556
02:15:43,080 --> 02:15:44,000
SPEAK ORALLY.

3557
02:15:44,000 --> 02:15:46,920
IT IS MY HOPE THAT ONE DAY, GOD

3558
02:15:46,920 --> 02:15:50,360
WILLING, HE WILL TELL ME HIS

3559
02:15:50,360 --> 02:15:51,680
THOUGHTS, WANTS, AND NEEDS.

3560
02:15:51,680 --> 02:15:55,160
I WOULD LOVE TO ASK MY KID, AND

3561
02:15:55,160 --> 02:15:57,560
HAVE HIM ANSWER ME, WHY HE LIKES

3562
02:15:57,560 --> 02:16:02,920
TO LISTEN TO THAT '70s SONG,

3563
02:16:02,920 --> 02:16:06,200
OOH CHILD THINGS ARE GONNA GET

3564
02:16:06,200 --> 02:16:06,440
EASIER.

3565
02:16:06,440 --> 02:16:06,600
♪

3566
02:16:06,600 --> 02:16:09,680
WHILE WE'RE IN THE CARE, OR

3567
02:16:09,680 --> 02:16:10,320
BETTE MIDLER WHEN TRAVELING OUT

3568
02:16:10,320 --> 02:16:11,120
OF STATE.

3569
02:16:11,120 --> 02:16:13,080
YOU SEE, MR. CHAIR AND MEMBERS,

3570
02:16:13,080 --> 02:16:16,600
INDIVIDUALS WHO ARE NOT VERBAL

3571
02:16:16,600 --> 02:16:18,560
AUTISM ARE SMART, FUNNY,

3572
02:16:18,560 --> 02:16:20,760
THOUGHTFUL, AND WANT TO LIVE A

3573
02:16:20,760 --> 02:16:22,120
HAPPY, HEALTHY, AND SAFE LIFE

3574
02:16:22,120 --> 02:16:27,160
JUST LIKE ALL OF US DO. 

3575
02:16:27,160 --> 02:16:29,000
I RESPECTFULLY IACC TO TACKLE

3576
02:16:29,000 --> 02:16:29,760
THESE INCREDIBLY IMPORTANT

3577
02:16:29,760 --> 02:16:30,000
ISSUES.

3578
02:16:30,000 --> 02:16:40,520
THANK YOU SO MUCH FOR YOUR TIME.

3579
02:16:42,600 --> 02:16:43,400
>>THANK YOU.

3580
02:16:43,400 --> 02:16:47,680
NEXT WE GO BACK TO ANTHONY TUCCI

3581
02:16:47,680 --> 02:16:58,160
WHO WAS ABLE TO LOG BACK ON.

3582
02:17:00,200 --> 02:17:01,560
>>I'M NOT SURE WHERE I
CUT OFF

3583
02:17:01,560 --> 02:17:03,000
SO I'LL START FROM THE

3584
02:17:03,000 --> 02:17:03,440
BEGINNING.

3585
02:17:03,440 --> 02:17:05,280
I APPRECIATE THE OPPORTUNITY TO

3586
02:17:05,280 --> 02:17:09,920
PRESENT MY COMMENTS THIS

3587
02:17:09,920 --> 02:17:11,240
AFTERNOON I'M THE PARENT OF A

3588
02:17:11,240 --> 02:17:13,280
19-YEAR-OLD SON WITH AUTISM,

3589
02:17:13,280 --> 02:17:13,600
NON-SPEAKER.

3590
02:17:13,600 --> 02:17:15,080
ADVOCATE FOR RIGHTS OF ALL

3591
02:17:15,080 --> 02:17:17,040
PEOPLE WITH ASD.

3592
02:17:17,040 --> 02:17:19,560
AND I'M STRONGLY COMMITTED TO

3593
02:17:19,560 --> 02:17:22,680
LEARNING ABOUT AUTISM RESEARCH

3594
02:17:22,680 --> 02:17:24,720
AND EVIDENCE-BASED

3595
02:17:24,720 --> 02:17:25,080
INTERVENTIONS.

3596
02:17:25,080 --> 02:17:27,480
MY COMMENTS WILL REVOLVE AROUND

3597
02:17:27,480 --> 02:17:28,920
TWO MAIN THEMES.

3598
02:17:28,920 --> 02:17:32,400
THEME 1, WE NEED MORE RESEARCH

3599
02:17:32,400 --> 02:17:33,800
THAT PROMOTES EFFECTIVE

3600
02:17:33,800 --> 02:17:35,440
INTERVENTIONS LED BY INDEPENDENT

3601
02:17:35,440 --> 02:17:39,600
AND QUALIFIED TEAMS OF

3602
02:17:39,600 --> 02:17:40,720
MULTI-DISCIPLINARY AND

3603
02:17:40,720 --> 02:17:41,840
INTERDISCIPLINARY RESEARCHERS.

3604
02:17:41,840 --> 02:17:44,320
THE LACK OF SUFFICIENT QUALITY

3605
02:17:44,320 --> 02:17:47,400
RESEARCH DELAYS THE EFFECTIVE

3606
02:17:47,400 --> 02:17:48,680
INTERVENTIONS, AND POSSIBLE

3607
02:17:48,680 --> 02:17:50,880
CONFIRMATIONS THAT PRIOR

3608
02:17:50,880 --> 02:17:51,760
FINDINGS WERE INACCURATE.

3609
02:17:51,760 --> 02:17:57,800
IT IS MY STRONG BELIEF THAT A

3610
02:17:57,800 --> 02:17:58,320
MULTI-DISCIPLINARY AND

3611
02:17:58,320 --> 02:17:59,640
INTERDISCIPLINARY APPROACH

3612
02:17:59,640 --> 02:18:03,480
OFFERS THE BEST OPPORTUNITIES TO

3613
02:18:03,480 --> 02:18:04,240
UNDERSTAND COMMUNICATION

3614
02:18:04,240 --> 02:18:08,280
CHALLENGES OF INDIVIDUALS WITH

3615
02:18:08,280 --> 02:18:08,600
ASD.

3616
02:18:08,600 --> 02:18:10,160
THE NCCIH HAS OFFERED AMAZING

3617
02:18:10,160 --> 02:18:14,200
INSIGHT ON THE VALUE OF USING A

3618
02:18:14,200 --> 02:18:15,200
CROSS-DISCIPLINARY APPROACH TO

3619
02:18:15,200 --> 02:18:17,400
DRAW A BRIDGE BETWEEN THE

3620
02:18:17,400 --> 02:18:19,040
DEEP-ROOTED SILOS IN THE FIELD

3621
02:18:19,040 --> 02:18:24,280
OF MEDICINE AND HEALTH.

3622
02:18:24,280 --> 02:18:26,880
IACC'S 2023 STRATEGIC PLAN

3623
02:18:26,880 --> 02:18:27,880
MASTERFULLY CALLS FOR

3624
02:18:27,880 --> 02:18:30,680
RESEARCHERS TO DEVELOP NEW

3625
02:18:30,680 --> 02:18:33,560
APPROACHES AND TECHNOLOGIES TO

3626
02:18:33,560 --> 02:18:35,000
HELP INDIVIDUALS WITH

3627
02:18:35,000 --> 02:18:37,520
COMMUNICATION CHALLENGES.

3628
02:18:37,520 --> 02:18:38,840
AND DELIVER INNOVATIVE

3629
02:18:38,840 --> 02:18:40,760
SCIENTIFIC RESEARCH WHILE

3630
02:18:40,760 --> 02:18:41,600
FOSTERING COLLABORATION.

3631
02:18:41,600 --> 02:18:45,720
THE STRATEGIC PLAN IS PERFECTLY

3632
02:18:45,720 --> 02:18:49,000
CALIBRATED TO EFFECTIVELY

3633
02:18:49,000 --> 02:18:50,320
RESOLVE RESEARCH GAPS INVOLVING

3634
02:18:50,320 --> 02:18:51,640
TECHNIQUES LIKE SPELLING TO

3635
02:18:51,640 --> 02:18:55,360
COMMUNICATE USED BY SOME

3636
02:18:55,360 --> 02:18:56,440
NON-SPEAKERS.

3637
02:18:56,440 --> 02:18:58,760
NOW IT IS UP TO THE SCIENTIFIC

3638
02:18:58,760 --> 02:19:03,240
COMMUNITY TO COLLABORATE AND TO

3639
02:19:03,240 --> 02:19:04,320
ENGAGE IN CROSS-DISCIPLINARY

3640
02:19:04,320 --> 02:19:07,080
RESEARCH SO THAT THEY CAN

3641
02:19:07,080 --> 02:19:09,360
REPLACE RESEARCH GAPS OFTEN

3642
02:19:09,360 --> 02:19:16,520
FILLED WITH ONE-SIDED BIAS, AND

3643
02:19:16,520 --> 02:19:20,200
SPECULATION, WITH INDEPENDENT

3644
02:19:20,200 --> 02:19:20,440
WISDOM.

3645
02:19:20,440 --> 02:19:23,040
HUMAN RIGHTS MUST ALWAYS LEAD AN

3646
02:19:23,040 --> 02:19:24,680
EVIDENCE-BASED MODEL.

3647
02:19:24,680 --> 02:19:27,760
RESEARCH GAPS OR DISAGREEMENTS

3648
02:19:27,760 --> 02:19:29,920
BETWEEN PROFESSIONALS SHOULD

3649
02:19:29,920 --> 02:19:31,480
NEVER SERVE TO CONDONE

3650
02:19:31,480 --> 02:19:33,320
UNPROFESSIONAL TURF WARS,

3651
02:19:33,320 --> 02:19:34,960
SIMILARLY NON-SPEAKERS SHOULD

3652
02:19:34,960 --> 02:19:37,360
NEVER BE CONDEMNED FOR SELECTING

3653
02:19:37,360 --> 02:19:38,800
A MODE OF COMMUNICATION THAT HAS

3654
02:19:38,800 --> 02:19:43,560
PROVEN TO BE EFFECTIVE FOR THEM.

3655
02:19:43,560 --> 02:19:47,160
THIS MISGUIDED ADVOCACY VIOLATES

3656
02:19:47,160 --> 02:19:49,320
THE COMMUNICATION RIGHTS AND

3657
02:19:49,320 --> 02:19:50,840
ETHICAL RIGHTS OF NON-SPEAKERS,

3658
02:19:50,840 --> 02:19:53,600
REPRESENTING A VIOLATION OF THE

3659
02:19:53,600 --> 02:19:54,520
EVIDENCE-BASED PRACTICE MODEL.

3660
02:19:54,520 --> 02:19:57,720
TO HELP PREVENT THESE TYPES OF

3661
02:19:57,720 --> 02:19:59,440
CHALLENGES, WE'RE ASKING THAT

3662
02:19:59,440 --> 02:20:02,480
IACC FORM A COMMITTEE THAT CAN

3663
02:20:02,480 --> 02:20:05,520
HELP GUIDE THE SCIENTIFIC

3664
02:20:05,520 --> 02:20:08,040
COMMUNITY TO DEVELOP APPROPRIATE

3665
02:20:08,040 --> 02:20:12,000
DUE PROCESS METHODS BEFORE

3666
02:20:12,000 --> 02:20:13,080
PROFESSIONAL TRADE ASSOCIATIONS

3667
02:20:13,080 --> 02:20:16,000
ISSUE PHYSICIAN STATEMENTS THAT

3668
02:20:16,000 --> 02:20:17,360
MAY HAVE EFFECTIVE DENYING

3669
02:20:17,360 --> 02:20:18,240
COMMUNICATION RIGHTS.

3670
02:20:18,240 --> 02:20:22,040
THIS PROCESS WILL HELP TO ENSURE

3671
02:20:22,040 --> 02:20:23,440
THAT RESEARCH WHICH INFORMS

3672
02:20:23,440 --> 02:20:29,960
POSITION PAPERS WILL BE GUIDED

3673
02:20:29,960 --> 02:20:32,560
BY INDIAN INDEPENDENCE,

3674
02:20:32,560 --> 02:20:33,640
FAIRNESS, AND DEEP PRACTICE

3675
02:20:33,640 --> 02:20:34,000
SCIENCE.

3676
02:20:34,000 --> 02:20:35,200
EXPERTS ON BOTH SIDES OF THE

3677
02:20:35,200 --> 02:20:37,920
AISLE WILL BE GIVEN A FAIR

3678
02:20:37,920 --> 02:20:40,080
OPPORTUNITY TO PRESENT THEIR

3679
02:20:40,080 --> 02:20:43,600
BEST SCIENTIFIC EVIDENCE IN AN

3680
02:20:43,600 --> 02:20:53,240
UNBIASED INDEPENDENT PROCESS. 

3681
02:20:53,240 --> 02:20:53,880
THANK YOU VERY MUCH.

3682
02:20:53,880 --> 02:20:55,960
>>THANK YOU FOR YOUR
COMMENTS.

3683
02:20:55,960 --> 02:20:57,200
THAT WORKED WELL THIS TIME

3684
02:20:57,200 --> 02:20:59,240
AROUND, THANK YOU FOR YOUR

3685
02:20:59,240 --> 02:20:59,520
PATIENCE.

3686
02:20:59,520 --> 02:21:00,120
>>THANK YOU.

3687
02:21:00,120 --> 02:21:05,040
>>AND OUR FINAL ORAL
COMMENTER

3688
02:21:05,040 --> 02:21:11,160
TODAY WILL BE MS. MARIAM EGAL.

3689
02:21:11,160 --> 02:21:12,240
>>GOOD AFTERNOON,
EVERYBODY.

3690
02:21:12,240 --> 02:21:15,000
THANK YOU SO MUCH FOR LETTING ME

3691
02:21:15,000 --> 02:21:16,240
COME HERE.

3692
02:21:16,240 --> 02:21:19,520
THANK YOU FOR INVITING ME TO

3693
02:21:19,520 --> 02:21:21,160
THIS MEETING.

3694
02:21:21,160 --> 02:21:25,880
SO, I'M HERE TODAY, YOU KNOW,

3695
02:21:25,880 --> 02:21:28,800
I'M ALONE WITH A 45-YEAR-OLD

3696
02:21:28,800 --> 02:21:30,920
WITH AN UNDIAGNOSED BEHAVIORAL

3697
02:21:30,920 --> 02:21:32,880
CONDITION, ALSO SOMALI.

3698
02:21:32,880 --> 02:21:36,960
AND I'M HERE TO BRING TO YOU

3699
02:21:36,960 --> 02:21:43,160
GUYS THE CHALLENGE, YOU KNOW,

3700
02:21:43,160 --> 02:21:44,240
THE RECOMMENDATIONS THAT HAVE

3701
02:21:44,240 --> 02:21:50,920
BEEN MADE AND PROBLEMS AND ALSO

3702
02:21:50,920 --> 02:21:52,440
I HAVE PREFERENCE

3703
02:21:52,440 --> 02:21:53,680
(INDISCERNIBLE) THAT CAN SHOW

3704
02:21:53,680 --> 02:21:57,080
YOU WHAT KNOWS THINGS ARE. 

3705
02:21:57,080 --> 02:22:00,400
PARENTS SAID THEY WERE VERY MUCH

3706
02:22:00,400 --> 02:22:08,440
SUFFERING OF RACISM IN GETTING

3707
02:22:08,440 --> 02:22:08,960
SERVICES.

3708
02:22:08,960 --> 02:22:09,520
POVERTY, HOUSEHOLD FAMILIES'

3709
02:22:09,520 --> 02:22:13,240
LACK OF KNOWLEDGE OF EXISTING

3710
02:22:13,240 --> 02:22:14,000
SERVICES, SINGLE PARENT

3711
02:22:14,000 --> 02:22:15,640
HOUSEHOLD, LACK OF FUNDING FOR

3712
02:22:15,640 --> 02:22:19,880
GRASS ROOTS ORGANIZATIONS THAT

3713
02:22:19,880 --> 02:22:21,080
CAN PROVIDE CULTURAL SERVICE,

3714
02:22:21,080 --> 02:22:23,320
LACK OF SERVICES FOR LIKE MY

3715
02:22:23,320 --> 02:22:25,720
COLLEAGUE JUST MENTIONED, LACK

3716
02:22:25,720 --> 02:22:28,360
OF SERVICES FOR YOUNG AUTISTIC

3717
02:22:28,360 --> 02:22:35,800
YOUNG ADULTS THAT ARE OUT THERE,

3718
02:22:35,800 --> 02:22:39,680
AND NOTHING, POST-SECONDARY, NO

3719
02:22:39,680 --> 02:22:40,160
SERVICES.

3720
02:22:40,160 --> 02:22:42,560
UNDIAGNOSED NO SERVICES RUNNING

3721
02:22:42,560 --> 02:22:44,400
AROUND, NO SAFETY NET, HOUSING

3722
02:22:44,400 --> 02:22:47,120
ALSO POSES A GREAT PROBLEM FOR

3723
02:22:47,120 --> 02:22:49,760
THESE FAMILIES, SINCE THEY ARE

3724
02:22:49,760 --> 02:22:51,400
FAMILIES OF LARGE HOUSEHOLDS AND

3725
02:22:51,400 --> 02:22:53,480
THEY ARE BEING EVICTED ALL

3726
02:22:53,480 --> 02:22:54,080
AROUND.

3727
02:22:54,080 --> 02:22:56,680
UNDIAGNOSED MENTAL HEALTH ISSUES

3728
02:22:56,680 --> 02:22:58,840
THAT GOES AROUND UNTREATED,

3729
02:22:58,840 --> 02:23:01,720
PARENTS AND SIBLINGS TEND TO

3730
02:23:01,720 --> 02:23:03,480
MANAGE SIGNS OF DEPRESSION,

3731
02:23:03,480 --> 02:23:04,680
ANXIETY, CHRONIC DISEASES AND

3732
02:23:04,680 --> 02:23:05,760
OTHER RELATING ISSUES.

3733
02:23:05,760 --> 02:23:07,760
SO IT'S NOT ONLY AFFECTING THE

3734
02:23:07,760 --> 02:23:09,960
INDIVIDUAL WITH THE AUTISM BUT

3735
02:23:09,960 --> 02:23:14,000
IT'S ALSO AFFECTING THE WHOLE

3736
02:23:14,000 --> 02:23:15,280
FAMILIES.

3737
02:23:15,280 --> 02:23:16,840
SO FOR RECOMMENDATIONS,

3738
02:23:16,840 --> 02:23:19,360
RESOURCES AND FUNDING TARGETING

3739
02:23:19,360 --> 02:23:20,760
COMMUNITY-BASED GRASS ROOTS

3740
02:23:20,760 --> 02:23:23,280
ORGANIZATIONS OF PARENTS OF

3741
02:23:23,280 --> 02:23:27,560
INDIVIDUALS WITH AUTISM.

3742
02:23:27,560 --> 02:23:29,840
THESE ORGANIZATIONS TRY WITHOUT

3743
02:23:29,840 --> 02:23:30,720
FUNDS, DOING COMMUNITY

3744
02:23:30,720 --> 02:23:33,480
ENGAGEMENT ACTIVITIES IN A

3745
02:23:33,480 --> 02:23:38,200
CULTURAL AND LINGISTLY

3746
02:23:38,200 --> 02:23:39,800
APPROPRIATE MANAGE.

3747
02:23:39,800 --> 02:23:41,560
IT'S NOT A ONE-SIZE-FITS-ALL.

3748
02:23:41,560 --> 02:23:45,520
BE MINDFUL OF ALL CULTURALLY

3749
02:23:45,520 --> 02:23:47,160
APPROPRIATE COMMUNICATION

3750
02:23:47,160 --> 02:23:50,760
STRATEGIES, ORAL VERSUS WRITTEN,

3751
02:23:50,760 --> 02:23:52,760
ENGLISH VERSUS OTHER LANGUAGES.

3752
02:23:52,760 --> 02:24:00,080
AND THROUGH OTHER CHANNELS. 

3753
02:24:00,080 --> 02:24:09,240
DIVERSIFY OUR WORK FORCE, BE

3754
02:24:09,240 --> 02:24:10,320
INCLUSIVE, INCENTIVIZE

3755
02:24:10,320 --> 02:24:12,320
SCHOLARSHIPS INCREASE AREA OF

3756
02:24:12,320 --> 02:24:13,400
MENTAL HEALTH AND BEHAVIOR

3757
02:24:13,400 --> 02:24:22,080
HEALTH FOR MINORITIES.

3758
02:24:22,080 --> 02:24:23,360
RESEARCH AND CAUSATION, WHY THE

3759
02:24:23,360 --> 02:24:29,920
HIGHER PREVALENCE IN THIS

3760
02:24:29,920 --> 02:24:34,440
COMMUNITY? 

3761
02:24:34,440 --> 02:24:36,200
YOU KNOW, RESOURCES SO WE CAN

3762
02:24:36,200 --> 02:24:37,160
HAVE PREVENTIVE MEASURES TO

3763
02:24:37,160 --> 02:24:39,120
ADDRESS WHAT THE ISSUES ARE.

3764
02:24:39,120 --> 02:24:40,560
NOTHING IS HAPPENING.

3765
02:24:40,560 --> 02:24:44,160
THANK YOU SO MUCH FOR HAVING ME

3766
02:24:44,160 --> 02:24:44,400
TESTIFY.

3767
02:24:44,400 --> 02:24:47,680
>>THANK YOU SO MUCH, MS.
EGAL,

3768
02:24:47,680 --> 02:24:49,080
FOR SHARING THOSE COMMENTS.

3769
02:24:49,080 --> 02:24:50,400
I'D LIKE TO REMIND EVERYONE YOU

3770
02:24:50,400 --> 02:24:51,600
CAN ACCESS THE WRITTEN

3771
02:24:51,600 --> 02:24:53,600
STATEMENTS THAT GO WITH THE ORAL

3772
02:24:53,600 --> 02:24:54,800
COMMENTS ON OUR WEBSITE, IF YOU

3773
02:24:54,800 --> 02:24:56,240
GO TO THE MEETING PAGE AND

3774
02:24:56,240 --> 02:24:58,560
SCROLL DOWN TO THE MEETING

3775
02:24:58,560 --> 02:25:00,040
MATERIALS, YOU'LL FIND THE THERE

3776
02:25:00,040 --> 02:25:03,360
AS WELL AS ALL OF OUR WRITTEN

3777
02:25:03,360 --> 02:25:05,320
ORAL COMMENTS THAT CAME IN THE

3778
02:25:05,320 --> 02:25:06,560
PUBLIC COMMENT PACKET.

3779
02:25:06,560 --> 02:25:09,080
SO FEEL FREE TO ACCESS THOSE.

3780
02:25:09,080 --> 02:25:12,040
NOW WE WILL BE MOVING TO THE

3781
02:25:12,040 --> 02:25:14,960
WRITTEN COMMENTS, IF I CAN HAVE

3782
02:25:14,960 --> 02:25:18,240
THE SLIDES. 

3783
02:25:18,240 --> 02:25:19,040
WONDERFUL.

3784
02:25:19,040 --> 02:25:21,120
AND IF I CAN HAVE CONTROL OF THE

3785
02:25:21,120 --> 02:25:23,960
SLIDES AS WELL.

3786
02:25:23,960 --> 02:25:25,240
FIRST WE'RE GOING TO BE STARTING

3787
02:25:25,240 --> 02:25:26,440
ON THIS PAGE.

3788
02:25:26,440 --> 02:25:28,560
WE HAVE 38 WRITTEN PUBLIC

3789
02:25:28,560 --> 02:25:31,480
COMMENTS TOTAL THAT WERE

3790
02:25:31,480 --> 02:25:31,760
SUBMITTED.

3791
02:25:31,760 --> 02:25:33,800
AND WE WILL -- WE HAVE 28

3792
02:25:33,800 --> 02:25:36,520
COMMENTS ON THE TOPIC OF

3793
02:25:36,520 --> 02:25:42,680
RESEARCH AND SERVICE NEEDS,

3794
02:25:42,680 --> 02:25:43,520
RESOURCE, POLICY IMPLICATION,

3795
02:25:43,520 --> 02:25:45,360
AND NAMES OF COMMENTERS ARE

3796
02:25:45,360 --> 02:25:46,560
LISTED HERE.

3797
02:25:46,560 --> 02:25:47,920
WE ALSO RECEIVED FOUR COMMENTS

3798
02:25:47,920 --> 02:25:50,320
ON THE TOPIC OF RESEARCH

3799
02:25:50,320 --> 02:25:51,640
SERVICES AND SUPPORTS FOR ADULTS

3800
02:25:51,640 --> 02:25:54,360
ON THE AUTISM SPECTRUM.

3801
02:25:54,360 --> 02:25:55,680
AND TWO COMMENTS ON MENTAL

3802
02:25:55,680 --> 02:25:58,400
HEALTH RESEARCH SERVICES AND

3803
02:25:58,400 --> 02:25:58,760
TREATMENT.

3804
02:25:58,760 --> 02:26:01,440
IN ADDITION WE HAD ONE COMMENT

3805
02:26:01,440 --> 02:26:03,680
ON THE ROLE OF IACC AND THE

3806
02:26:03,680 --> 02:26:06,000
FEDERAL GOVERNMENT, ONE COMMENT

3807
02:26:06,000 --> 02:26:07,640
ON EMPLOYMENT, ONE COMMENT ON

3808
02:26:07,640 --> 02:26:09,480
THE INCLUSION OF AUTISTIC

3809
02:26:09,480 --> 02:26:11,680
PERSPECTIVES IN RESEARCH.

3810
02:26:11,680 --> 02:26:16,120
AND ONE COMMENT ABOUT CONCERN

3811
02:26:16,120 --> 02:26:17,040
ABOUT MEDICAL PRACTICES.

3812
02:26:17,040 --> 02:26:18,680
I BELIEVE THAT'S THE FULL LIST.

3813
02:26:18,680 --> 02:26:20,440
YES, THAT'S THE FULL LIST OF

3814
02:26:20,440 --> 02:26:21,320
WRITTEN PUBLIC COMMENTS AND

3815
02:26:21,320 --> 02:26:22,960
THOSE ARE IN YOUR PACKET.

3816
02:26:22,960 --> 02:26:30,160
SO NOW WE HAVE SOME TIME FOR

3817
02:26:30,160 --> 02:26:31,480
COMMITTEE DISCUSSION.

3818
02:26:31,480 --> 02:26:35,080
>>I'D LIKE TO INVITE
MEMBERS OF

3819
02:26:35,080 --> 02:26:36,720
IACC TO GO AHEAD AND RAISE YOUR

3820
02:26:36,720 --> 02:26:39,760
HANDS AND I CAN CALL ON YOU.

3821
02:26:39,760 --> 02:26:44,280
AND THE FIRST THAT I SEE IS

3822
02:26:44,280 --> 02:26:44,480
PAUL.

3823
02:26:44,480 --> 02:26:45,880
>>THANKS, DR. GORDON.

3824
02:26:45,880 --> 02:26:47,520
THANKS, DR. DANIELS AS WELL.

3825
02:26:47,520 --> 02:26:49,840
I WANTED TO FOLLOW UP ON THE

3826
02:26:49,840 --> 02:26:52,560
ORAL COMMENTS THAT WE HEARD FROM

3827
02:26:52,560 --> 02:26:54,520
DR. ASATO AND DR. DAWSON, AND

3828
02:26:54,520 --> 02:26:56,640
THAT MR. BANKS TOUCHED ON AS

3829
02:26:56,640 --> 02:26:59,000
WELL, REGARDING THE PROPOSED

3830
02:26:59,000 --> 02:27:01,560
CHANGES IN THE REQUIREMENTS FOR

3831
02:27:01,560 --> 02:27:02,640
PEDIATRIC TRAINING.

3832
02:27:02,640 --> 02:27:05,400
TO BE BRIEF, I SHARE THEIR VERY

3833
02:27:05,400 --> 02:27:07,560
DEEP CONCERNS HERE THAT THESE

3834
02:27:07,560 --> 02:27:08,640
PROPOSED CHANGES ARE TERRIBLY

3835
02:27:08,640 --> 02:27:10,520
ILL ADVISED ON MULTIPLE FRONTS.

3836
02:27:10,520 --> 02:27:12,160
I'M GOING TO GO THROUGH THREE

3837
02:27:12,160 --> 02:27:15,240
POINTS IN THE PROPOSED CHANGES

3838
02:27:15,240 --> 02:27:16,120
THAT THEY TOUCHED.

3839
02:27:16,120 --> 02:27:19,240
FIRST OF ALL, IT IS PROPOSED TO

3840
02:27:19,240 --> 02:27:21,040
ELIMINATE REQUIREMENTS FOR,

3841
02:27:21,040 --> 02:27:22,920
QUOTE, ENSURING EXPOSURE TO THE

3842
02:27:22,920 --> 02:27:25,200
SPECTRUM OF NORMAL DEVELOPMENT

3843
02:27:25,200 --> 02:27:27,520
AT ALL AGES.

3844
02:27:27,520 --> 02:27:30,000
I SIMPLY CANNOT FATHOM WHY THIS

3845
02:27:30,000 --> 02:27:31,120
REQUIREMENT WOULD BE ELIMINATED.

3846
02:27:31,120 --> 02:27:32,960
IN SHORT, TO USE SLIGHTLY

3847
02:27:32,960 --> 02:27:35,920
DIFFERENT WORDS, THE SUGGESTION

3848
02:27:35,920 --> 02:27:37,800
IS THAT PEDIATRICIANS IN

3849
02:27:37,800 --> 02:27:40,280
TRAINING WOULD NOT HAVE TO HAVE

3850
02:27:40,280 --> 02:27:41,840
ADEQUATE UNDERSTANDING OF

3851
02:27:41,840 --> 02:27:43,120
SPECTRUM OF NEURODIVERSITY, THAT

3852
02:27:43,120 --> 02:27:45,120
FLIES IN THE FACE OF WORK WE

3853
02:27:45,120 --> 02:27:48,480
UNDERSTAND NOW TO BE SO VERY

3854
02:27:48,480 --> 02:27:49,520
IMPORTANT, PEDIATRICIANS REALLY

3855
02:27:49,520 --> 02:27:50,800
LEAD THE EVALUATION OF CHILDREN,

3856
02:27:50,800 --> 02:27:55,720
THEY ARE THE ONES CALLED UPON TO

3857
02:27:55,720 --> 02:27:58,280
HELP PARENTS WHEN A CHILD MIGHT

3858
02:27:58,280 --> 02:28:01,520
NEED ADDITIONAL SUPPORT, WHEN

3859
02:28:01,520 --> 02:28:02,160
BEHAVIORS ARE WITHIN THE

3860
02:28:02,160 --> 02:28:04,560
SPECTRUM, UNDERSTANDING STRENGTH

3861
02:28:04,560 --> 02:28:05,480
AND WEAKNESSES, PEDIATRICIANS

3862
02:28:05,480 --> 02:28:06,760
MUST GET THIS TRAINING, IT MAKES

3863
02:28:06,760 --> 02:28:11,000
NO SENSE TO ELIMINATE THE

3864
02:28:11,000 --> 02:28:11,920
REQUIREMENT FOR ADEQUATE

3865
02:28:11,920 --> 02:28:13,440
EXPOSURE TO SPECTRUM OF NORMAL

3866
02:28:13,440 --> 02:28:14,080
DEVELOPMENT.

3867
02:28:14,080 --> 02:28:16,040
IT'S PROPOSED THEY WOULD

3868
02:28:16,040 --> 02:28:17,040
ELIMINATE REQUIREMENT OF

3869
02:28:17,040 --> 02:28:17,640
EXPOSURE TO LONGITUDINAL

3870
02:28:17,640 --> 02:28:18,920
MANAGEMENT OF CHILDREN WITH

3871
02:28:18,920 --> 02:28:21,320
SPECIAL HEALTH CARE NEEDS AND

3872
02:28:21,320 --> 02:28:22,320
CHRONIC CONDITIONS.

3873
02:28:22,320 --> 02:28:23,760
AGAIN, IT IS SIMPLY IMPOSSIBLE

3874
02:28:23,760 --> 02:28:27,120
FOR ME TO FATHOM THE MOTIVATION

3875
02:28:27,120 --> 02:28:27,440
BEHIND THIS.

3876
02:28:27,440 --> 02:28:30,760
AS OTHERS HAVE SPOKEN TO, AND AS

3877
02:28:30,760 --> 02:28:32,320
WE SEE VERY BROADLY IN THE

3878
02:28:32,320 --> 02:28:34,360
MEDICAL COMMUNITY NOW THERE'S A

3879
02:28:34,360 --> 02:28:36,440
STRONG MOVEMENT THAT WE MUST

3880
02:28:36,440 --> 02:28:39,720
PROVIDE A MEDICAL HOME FOR EVERY

3881
02:28:39,720 --> 02:28:40,360
CHILD, THIS APPLIES BEYOND

3882
02:28:40,360 --> 02:28:41,680
PEDIATRICS OF COURSE BUT WE NEED

3883
02:28:41,680 --> 02:28:44,440
TO HAVE SOMEBODY WHO IS AT THE

3884
02:28:44,440 --> 02:28:46,080
CENTER COORDINATING MEDICAL CARE

3885
02:28:46,080 --> 02:28:47,040
FOR INDIVIDUALS, FOR CHILDREN

3886
02:28:47,040 --> 02:28:49,680
AND ESPECIALLY THOSE WITH

3887
02:28:49,680 --> 02:28:51,240
SPECIAL HEALTH CARE NEEDS.

3888
02:28:51,240 --> 02:28:53,960
AGAIN JUST MAKES NO SENSE TO

3889
02:28:53,960 --> 02:28:55,480
ELIMINATE THE REQUIREMENTS THAT

3890
02:28:55,480 --> 02:28:57,680
PEDIATRICIANS IN TRAINING GET

3891
02:28:57,680 --> 02:28:58,560
EXPOSURE TO THE LONGITUDINAL

3892
02:28:58,560 --> 02:29:04,920
MANAGEMENT OF THESE KINDS OF

3893
02:29:04,920 --> 02:29:05,320
ISSUES.

3894
02:29:05,320 --> 02:29:07,520
THERE'S PROPOSAL TO ELIMINATE

3895
02:29:07,520 --> 02:29:08,720
HAVING FACULTY MEMBER ON

3896
02:29:08,720 --> 02:29:09,920
TRAINING FACULTY CERTIFIED IN

3897
02:29:09,920 --> 02:29:10,920
DEVELOPMENTAL BEHAVIORAL

3898
02:29:10,920 --> 02:29:11,320
PEDIATRICS.

3899
02:29:11,320 --> 02:29:14,400
I'M BIASED BECAUSE I'M A

3900
02:29:14,400 --> 02:29:17,400
DEVELOPMENTAL BEHAVIORAL

3901
02:29:17,400 --> 02:29:19,120
PEDIATRICIAN, I RECEIVE NO

3902
02:29:19,120 --> 02:29:21,080
SALARY SUPPORT FOR TRAINING OF

3903
02:29:21,080 --> 02:29:21,840
PEDIATRIC RESIDENTS OR MED

3904
02:29:21,840 --> 02:29:23,200
STUDENTS OR ANYTHING LIKE THAT

3905
02:29:23,200 --> 02:29:25,240
BUT AS OTHERS POINTED OUT THESE

3906
02:29:25,240 --> 02:29:28,120
ARE CORE FACULTY -- THESE ARE

3907
02:29:28,120 --> 02:29:31,840
PEOPLE WHO WITHIN THE PEDIATRIC

3908
02:29:31,840 --> 02:29:33,520
SPECIALTY HAVE KNOWN CERTIFIED

3909
02:29:33,520 --> 02:29:36,440
IN THE EXPERTISE IN THE CARE OF

3910
02:29:36,440 --> 02:29:38,720
CHILDREN WITH AUTISM AND RELATED

3911
02:29:38,720 --> 02:29:39,160
CONDITIONS.

3912
02:29:39,160 --> 02:29:43,000
THERE ARE CERTAINLY CHILD

3913
02:29:43,000 --> 02:29:44,000
NEUROLOGISTS LIKE DR. ASATO,

3914
02:29:44,000 --> 02:29:45,200
CHILD PSYCHIATRISTS LIKE MY

3915
02:29:45,200 --> 02:29:47,400
COLLEAGUES DR. SIEGEL AND PIVEN,

3916
02:29:47,400 --> 02:29:49,600
WHO COULD PROVIDE THIS KIND OF

3917
02:29:49,600 --> 02:29:51,800
TRAINING TO PEDIATRICIANS BUT IN

3918
02:29:51,800 --> 02:29:53,720
FACT THE PROPOSED CHANGES DO NOT

3919
02:29:53,720 --> 02:29:55,160
MANDATE THAT YOU COULD

3920
02:29:55,160 --> 02:29:59,160
REPLACE -- HAVE A CHILD

3921
02:29:59,160 --> 02:30:04,320
PSYCHIATRIST OR CHILD

3922
02:30:04,320 --> 02:30:08,960
NEUROLOGIST WITH EXPERTISE, THEY

3923
02:30:08,960 --> 02:30:11,120
SIMPLY DROP THE REQUIREMENT.

3924
02:30:11,120 --> 02:30:11,760
NOT ACCEPTABLE.

3925
02:30:11,760 --> 02:30:14,000
AS THE POINT HAS BEEN MADE

3926
02:30:14,000 --> 02:30:15,160
RECENTLY IN PRINT THERE'S AN

3927
02:30:15,160 --> 02:30:15,840
EPIDEMIC OF NEED.

3928
02:30:15,840 --> 02:30:19,280
THIS IS A TERRIBLE TIME TO BE

3929
02:30:19,280 --> 02:30:22,080
WEAKENING THE TRAINING OF FUTURE

3930
02:30:22,080 --> 02:30:22,760
PEDIATRICIANS.

3931
02:30:22,760 --> 02:30:25,480
THE IACC HAS SPONSORED WORKSHOPS

3932
02:30:25,480 --> 02:30:26,680
ON CO-OCCURRING CONDITIONS

3933
02:30:26,680 --> 02:30:27,680
HIGHLIGHTING LACK OF MEDICAL

3934
02:30:27,680 --> 02:30:29,000
TRAINING RELATED TO AUTISM.

3935
02:30:29,000 --> 02:30:31,960
WE NEED TO DO NOW WHAT ACGME

3936
02:30:31,960 --> 02:30:34,800
NEEDS TO DO TO BOLSTER THE

3937
02:30:34,800 --> 02:30:38,400
TRAINING OF THE MEDICAL

3938
02:30:38,400 --> 02:30:39,240
WORKFORCE, NOT COMPROMISE IS.

3939
02:30:39,240 --> 02:30:45,640
>>THANK YOU, PAUL, FOR
THE

3940
02:30:45,640 --> 02:30:45,920
COMMENTS.

3941
02:30:45,920 --> 02:30:46,120
DINA?

3942
02:30:46,120 --> 02:30:47,600
>>I JUST WANT TO, AGAIN,

3943
02:30:47,600 --> 02:30:49,360
REINFORCE WHAT ALL THE DOCTORS

3944
02:30:49,360 --> 02:30:51,080
BEFORE ME HAVE SAID.

3945
02:30:51,080 --> 02:30:53,280
I THINK IF IT'S POSSIBLE, MAYBE

3946
02:30:53,280 --> 02:30:54,560
WE COULD DISCUSS A STATEMENT

3947
02:30:54,560 --> 02:30:56,680
FROM THE IACC ABOUT THESE

3948
02:30:56,680 --> 02:30:57,560
POTENTIAL CHANGES.

3949
02:30:57,560 --> 02:31:01,760
I DON'T KNOW IF THAT'S POSSIBLE 

3950
02:31:01,760 --> 02:31:09,080
BUT I WANTED TO FOCUS ON THE

3951
02:31:09,080 --> 02:31:10,280
COMMENTS RELATED TO ADULTS, AND

3952
02:31:10,280 --> 02:31:10,400
--

3953
02:31:10,400 --> 02:31:11,760
>>MAY I MAKE A
SUGGESTION?

3954
02:31:11,760 --> 02:31:14,480
LET'S COME BACK TO THE COMMENTS

3955
02:31:14,480 --> 02:31:16,280
ON ADULTS, AND LET ME ASK -- I

3956
02:31:16,280 --> 02:31:19,320
PROMISE WE'LL  COME BACK.

3957
02:31:19,320 --> 02:31:21,520
PUT YOUR HAND BACK UP SO I DON'T

3958
02:31:21,520 --> 02:31:21,920
FORGET.

3959
02:31:21,920 --> 02:31:27,160
BUT YOU SORT OF MADE A THOUGHT

3960
02:31:27,160 --> 02:31:28,880
THAT WE -- PROPOSITION WE AS

3961
02:31:28,880 --> 02:31:31,720
IACC COULD PROVIDE SOME FORM OF

3962
02:31:31,720 --> 02:31:33,000
RECOMMENDATION.

3963
02:31:33,000 --> 02:31:35,160
I'M GOING TO ASK EVERYONE WHO

3964
02:31:35,160 --> 02:31:38,440
WOULD LIKE TO COMMENT ON THAT

3965
02:31:38,440 --> 02:31:40,800
PARTICULAR THING TO TO RAISE

3966
02:31:40,800 --> 02:31:42,320
YOUR HAND AND HOLD OFF ON

3967
02:31:42,320 --> 02:31:43,640
RAISING HANDS FOR OTHER COMMENTS

3968
02:31:43,640 --> 02:31:44,640
FOR THE MOMENT.

3969
02:31:44,640 --> 02:31:48,080
LET ME JUST SAY WE'RE AN

3970
02:31:48,080 --> 02:31:49,320
ADVISORY -- GO AHEAD, DENA.

3971
02:31:49,320 --> 02:31:50,520
>>ON THAT TOPIC I WANT TO
SAY

3972
02:31:50,520 --> 02:31:52,720
THIS IS THE OPPOSITE OF WHAT THE

3973
02:31:52,720 --> 02:31:54,880
AMERICAN DENTAL ASSOCIATION HAS

3974
02:31:54,880 --> 02:31:55,320
DONE.

3975
02:31:55,320 --> 02:31:57,400
THEY ARE MANDATING TRAINING WITH

3976
02:31:57,400 --> 02:31:58,720
PEOPLE WITH DEVELOPMENTAL

3977
02:31:58,720 --> 02:32:01,320
DISABILITY IN THEIR PROTOCOLS.

3978
02:32:01,320 --> 02:32:02,880
SO, THIS REALLY IS OPPOSITE OF

3979
02:32:02,880 --> 02:32:04,640
WHAT OTHER MEDICAL FIELDS HAVE

3980
02:32:04,640 --> 02:32:08,240
SEEN AS VALUABLE AND NECESSARY.

3981
02:32:08,240 --> 02:32:09,560
AND THEN I'M HOLD MY OTHER

3982
02:32:09,560 --> 02:32:09,800
THOUGHT.

3983
02:32:09,800 --> 02:32:10,560
>>GREAT.

3984
02:32:10,560 --> 02:32:11,640
WE'LL COME BACK FOR THAT.

3985
02:32:11,640 --> 02:32:14,040
AND MEANTIME I'M GOING TO GO TO

3986
02:32:14,040 --> 02:32:14,320
OTHER FOLKS.

3987
02:32:14,320 --> 02:32:17,320
BEFORE OTHER FOLKS I WANT TO

3988
02:32:17,320 --> 02:32:18,000
CLARIFY SOMETHING AND, SUSAN,

3989
02:32:18,000 --> 02:32:20,160
PLEASE JUMP IN IF I GET THIS

3990
02:32:20,160 --> 02:32:20,680
WRONG.

3991
02:32:20,680 --> 02:32:22,440
WE'RE AN ADVISORY BODY TO THE

3992
02:32:22,440 --> 02:32:23,200
SECRETARY FOR HEALTH AND HUMAN

3993
02:32:23,200 --> 02:32:25,120
SERVICES SO WE AS A COMMITTEE,

3994
02:32:25,120 --> 02:32:29,160
AGAIN SUSAN JUMP IF IN I'M

3995
02:32:29,160 --> 02:32:30,560
WRONG, CAN EXPRESS OUR CONCERN

3996
02:32:30,560 --> 02:32:33,600
AS A COMMITTEE TO THE SECRETARY

3997
02:32:33,600 --> 02:32:35,800
AND ASK THE SECRETARY TO TAKE

3998
02:32:35,800 --> 02:32:40,840
WHATEVER ACTION IN THIS CASE HE

3999
02:32:40,840 --> 02:32:45,240
DEEMS APPROPRIATE GIVEN OUR

4000
02:32:45,240 --> 02:32:45,720
CONCERNS.

4001
02:32:45,720 --> 02:32:50,800
AS A COMMITTEE WE CAN'T, AS A

4002
02:32:50,800 --> 02:32:52,280
COMMITTEE, PROVIDE A

4003
02:32:52,280 --> 02:32:57,360
RECOMMENDATION TO THE AMERICAN

4004
02:32:57,360 --> 02:33:01,960
ACADEMY OF PEDIATRICS, ACGME

4005
02:33:01,960 --> 02:33:07,440
FOLKS, AS INDIVIDUALS OR

4006
02:33:07,440 --> 02:33:08,760
ORGANIZATIONS ON THE COMMITTEE

4007
02:33:08,760 --> 02:33:11,480
YOU CAN PROVIDE THAT INPUT BUT

4008
02:33:11,480 --> 02:33:13,080
AS A COMMITTEE OUR INPUT SHOULD

4009
02:33:13,080 --> 02:33:14,200
GO TO THE SECRETARY.

4010
02:33:14,200 --> 02:33:15,000
>>THE COMMITTEE IS
PERMITTED TO

4011
02:33:15,000 --> 02:33:16,720
MAKE A STATEMENT.

4012
02:33:16,720 --> 02:33:17,640
WE'VE MADE STATEMENTS BEFORE.

4013
02:33:17,640 --> 02:33:17,880
>>OKAY.

4014
02:33:17,880 --> 02:33:20,240
>>THE STATEMENT ON THE
WEBSITE,

4015
02:33:20,240 --> 02:33:23,080
WE CAN SEND A LETTER THAT I

4016
02:33:23,080 --> 02:33:26,240
BELIEVE WE CAN SEND A LETTER.

4017
02:33:26,240 --> 02:33:26,480
>>OKAY.

4018
02:33:26,480 --> 02:33:27,520
>>COPY THE SECRETARY.

4019
02:33:27,520 --> 02:33:29,440
I CAN LOOK INTO WHETHER WE CAN

4020
02:33:29,440 --> 02:33:31,800
HAVE A LETTER TO THE ACTUAL

4021
02:33:31,800 --> 02:33:32,800
COMMITTEE BUT WE CAN MAKE A

4022
02:33:32,800 --> 02:33:34,040
STATEMENT ON THE WEBSITE AND

4023
02:33:34,040 --> 02:33:36,160
MAKE SURE IT GETS TO THE

4024
02:33:36,160 --> 02:33:37,920
COMMITTEE THAT NEEDS TO SEE IT.

4025
02:33:37,920 --> 02:33:38,400
>>OKAY.

4026
02:33:38,400 --> 02:33:40,360
SO I TAKE THAT BACK.

4027
02:33:40,360 --> 02:33:45,040
WE CAN, IF WE WISH THEN, MAKE A

4028
02:33:45,040 --> 02:33:45,320
STATEMENT.

4029
02:33:45,320 --> 02:33:46,160
BEFORE WE FORMULATE WHAT THAT

4030
02:33:46,160 --> 02:33:48,120
STATEMENT WOULD LOOK LIKE WHAT

4031
02:33:48,120 --> 02:33:49,560
I'M GOING TO ASK IS THERE'S A

4032
02:33:49,560 --> 02:33:52,600
BUNCH OF PEOPLE WHO RAISED THEIR

4033
02:33:52,600 --> 02:33:52,960
HANDS.

4034
02:33:52,960 --> 02:33:55,800
I'D LIKE -- WE CAN KEEP THIS

4035
02:33:55,800 --> 02:33:57,440
BRIEF UNLESS THERE'S

4036
02:33:57,440 --> 02:33:57,760
DISAGREEMENT.

4037
02:33:57,760 --> 02:33:59,680
SO SO FAR I'VE HEARD EXPRESSIONS

4038
02:33:59,680 --> 02:34:01,240
FROM TWO MEMBERS OF THE

4039
02:34:01,240 --> 02:34:03,120
COMMITTEE, THAT THEY WOULD LIKE

4040
02:34:03,120 --> 02:34:06,080
TO MAKE A STATEMENT AS A

4041
02:34:06,080 --> 02:34:08,000
COMMITTEE AGAINST THIS MOVE.

4042
02:34:08,000 --> 02:34:10,120
SO, IF YOU ARE GOING TO -- IF

4043
02:34:10,120 --> 02:34:12,320
YOU RAISED YOUR HAND BECAUSE YOU

4044
02:34:12,320 --> 02:34:14,040
WANT TO AGREE WITH PREVIOUS

4045
02:34:14,040 --> 02:34:17,000
SPEAKERS, SAY I AGREE OR IF

4046
02:34:17,000 --> 02:34:19,000
THERE'S A PERTINENT POINT OTHERS

4047
02:34:19,000 --> 02:34:20,800
HAVEN'T RAISED SAY THAT, BUT

4048
02:34:20,800 --> 02:34:21,280
BRIEFLY.

4049
02:34:21,280 --> 02:34:23,480
IF YOU HAVE AGAINST SAYING

4050
02:34:23,480 --> 02:34:25,120
SOMETHING AS A COMMITTEE, DO

4051
02:34:25,120 --> 02:34:26,520
EXPRESS REASONS WHY YOU MIGHT BE

4052
02:34:26,520 --> 02:34:27,640
AGAINST THAT MOVE.

4053
02:34:27,640 --> 02:34:29,600
YOU DO NOT HAVE TO AT THIS POINT

4054
02:34:29,600 --> 02:34:31,000
SAY ANYTHING IF YOU AGREE.

4055
02:34:31,000 --> 02:34:33,080
SO IF YOU JUST WANT TO SAY I

4056
02:34:33,080 --> 02:34:35,400
AGREE WE'LL TAKE A VOTE LATER ON

4057
02:34:35,400 --> 02:34:37,800
THIS, TO MAKE SURE WE'RE GETTING

4058
02:34:37,800 --> 02:34:40,200
EVERYTHING RIGHT, BUT IF YOU

4059
02:34:40,200 --> 02:34:41,520
WANT TO EXPRESS VERBALLY

4060
02:34:41,520 --> 02:34:43,280
SOMETHING ABOUT IT, RAISE YOUR

4061
02:34:43,280 --> 02:34:45,640
HAND NOW, EITHER PRO OR AGAINST,

4062
02:34:45,640 --> 02:34:48,280
BUT PLEASE TRY TO KEEP IT BRIEF

4063
02:34:48,280 --> 02:34:49,520
AND ONLY SAY SOMETHING THAT

4064
02:34:49,520 --> 02:34:52,360
HASN'T ALREADY BEEN SAID BEFORE.

4065
02:34:52,360 --> 02:34:59,240
WE'LL START WITH YETTA MYRICK.

4066
02:34:59,240 --> 02:34:59,560
>>I AGREE.

4067
02:34:59,560 --> 02:35:03,400
>>THANK YOU VERY MUCH.

4068
02:35:03,400 --> 02:35:05,120
DR. FLEES BERG?

4069
02:35:05,120 --> 02:35:06,480
>>I AGREE, DEFINITELY AN

4070
02:35:06,480 --> 02:35:10,880
IMPORTANT ISSUE FOR US TO

4071
02:35:10,880 --> 02:35:12,560
COMMENT ON.

4072
02:35:12,560 --> 02:35:13,360
>>OKAY.

4073
02:35:13,360 --> 02:35:13,600
JAYLIN?

4074
02:35:13,600 --> 02:35:15,120
>>I COME AT THIS
DIFFERENTLY,

4075
02:35:15,120 --> 02:35:17,400
VERY MUCH IN FAVOR OF US MAKING

4076
02:35:17,400 --> 02:35:19,200
A STATEMENT, OVER THE LAST 30

4077
02:35:19,200 --> 02:35:22,360
YEARS WITH MY HUSBAND'S RESEARCH

4078
02:35:22,360 --> 02:35:25,320
WITH RSV WE'VE BEEN AROUND

4079
02:35:25,320 --> 02:35:26,720
NUMEROUS PEDIATRICIANS AND MANY

4080
02:35:26,720 --> 02:35:28,920
DIFFERENT LEVELS, ONE OF THE

4081
02:35:28,920 --> 02:35:31,240
MAJOR THINGS I SEE IS

4082
02:35:31,240 --> 02:35:33,000
PEDIATRICIANS ARE EDUCATORS.

4083
02:35:33,000 --> 02:35:37,360
THEY EDUCATE THE FAMILIES, THEY

4084
02:35:37,360 --> 02:35:40,200
EDUCATE TO KNOW WHAT CAN BE

4085
02:35:40,200 --> 02:35:41,080
EXPECTED, DEVELOPMENTAL

4086
02:35:41,080 --> 02:35:41,360
MILESTONES.

4087
02:35:41,360 --> 02:35:43,800
IF YOU DON'T KNOW WHAT THOSE

4088
02:35:43,800 --> 02:35:44,800
ARE, YOU CANNOT EDUCATE FAMILIES

4089
02:35:44,800 --> 02:35:46,680
AND INDIVIDUALS AS WELL AS LOOK

4090
02:35:46,680 --> 02:35:48,080
OUT FOR THE PATIENT.

4091
02:35:48,080 --> 02:35:50,040
SO WITH THE NUMEROUS PEOPLE THAT

4092
02:35:50,040 --> 02:35:52,000
WE'VE HAD THE OPPORTUNITY BEING

4093
02:35:52,000 --> 02:35:54,560
WITH AND AROUND ACROSS THE

4094
02:35:54,560 --> 02:35:56,080
COUNTRY WITH PEDIATRICIANS, I

4095
02:35:56,080 --> 02:35:57,040
WOULD SAY LET'S GIVE THEM AS

4096
02:35:57,040 --> 02:35:59,440
MUCH TRAINING AS WE POSSIBLY

4097
02:35:59,440 --> 02:36:01,760
CAN, AND IN FACT EVEN INCREASE

4098
02:36:01,760 --> 02:36:04,840
IT IF POSSIBLE IN MEDICAL

4099
02:36:04,840 --> 02:36:05,680
SCHOOLS.

4100
02:36:05,680 --> 02:36:07,280
THANK YOU.

4101
02:36:07,280 --> 02:36:09,240
>>THANK YOU, JALYNN.

4102
02:36:09,240 --> 02:36:09,800
LAUREN?

4103
02:36:09,800 --> 02:36:11,080
>>JUST WONDERING IF
THERE'S AN

4104
02:36:11,080 --> 02:36:14,480
OPPORTUNITY FOR THE COMMITTEE TO

4105
02:36:14,480 --> 02:36:16,320
INTERACT WITH ACGME DIRECTLY TO

4106
02:36:16,320 --> 02:36:20,120
LEARN MORE ABOUT WHY THE

4107
02:36:20,120 --> 02:36:20,720
 CHANGE

4108
02:36:20,720 --> 02:36:21,480
THAT MIGHT HELP US UNDERSTAND

4109
02:36:21,480 --> 02:36:23,640
WHY THE CHANGE AND OFFER

4110
02:36:23,640 --> 02:36:25,840
SUGGESTIONS IN ADDITION TO A

4111
02:36:25,840 --> 02:36:26,080
LETTER.

4112
02:36:26,080 --> 02:36:26,520
>>EXCELLENT POINT.

4113
02:36:26,520 --> 02:36:28,760
WE CAN FIGURE OUT HOW TO

4114
02:36:28,760 --> 02:36:29,440
INCORPORATE THAT INTO THE

4115
02:36:29,440 --> 02:36:39,160
STATEMENT WE WANT TO MAKE.

4116
02:36:39,160 --> 02:36:42,120
>>COMMENTS CALLED THE
PROPOSAL

4117
02:36:42,120 --> 02:36:43,560
HORRIFYING AND SHE SAYS PLEASE

4118
02:36:43,560 --> 02:36:46,720
RAISE YOUR VOICES AND OPPOSE

4119
02:36:46,720 --> 02:36:49,040
THIS, DIRECTS PEOPLE TO DR.

4120
02:36:49,040 --> 02:36:56,360
DAWSON'S COMMENT ON THE IACC WEB

4121
02:36:56,360 --> 02:37:02,240
MAIN PAGE AND THE WEB PAGE.

4122
02:37:02,240 --> 02:37:04,600
>>AS INDIVIDUALS, ANY
MAYBE AND

4123
02:37:04,600 --> 02:37:05,440
ANYONE CAN EXPRESS THEIR

4124
02:37:05,440 --> 02:37:05,920
OPINION.

4125
02:37:05,920 --> 02:37:07,240
IF YOU WANT TO KNOW HOW TO

4126
02:37:07,240 --> 02:37:10,160
EXPRESS THE OPINION TO THE

4127
02:37:10,160 --> 02:37:12,240
ORGANIZATION DIRECTLY, DO VISIT

4128
02:37:12,240 --> 02:37:13,240
THE WEBSITE MENTIONED IN THE

4129
02:37:13,240 --> 02:37:16,160
PUBLIC COMMENTS WHICH ARE POSTED

4130
02:37:16,160 --> 02:37:19,840
ON THE IACC WEBSITE ALREADY.

4131
02:37:19,840 --> 02:37:24,000
SCOTT, DID YOU WANT TO ADD

4132
02:37:24,000 --> 02:37:24,680
SOMETHING ELSE?

4133
02:37:24,680 --> 02:37:25,800
>>THANKS, DR. GORDON.

4134
02:37:25,800 --> 02:37:27,680
I WANT TO SAY I AGREE.

4135
02:37:27,680 --> 02:37:30,320
AND I WAS A PUBLIC MEMBER

4136
02:37:30,320 --> 02:37:34,360
PREVIOUSLY ON THE IACC BEFORE,

4137
02:37:34,360 --> 02:37:36,080
FEDERAL GOVERNMENT, YEARS AGO.

4138
02:37:36,080 --> 02:37:37,520
WE DID A STATEMENT YEARS AGO

4139
02:37:37,520 --> 02:37:39,400
RELATED TO I THINK ABOUT GUN

4140
02:37:39,400 --> 02:37:41,760
VIOLENCE AND HOW AUTISTIC PEOPLE

4141
02:37:41,760 --> 02:37:43,840
ARE MORE LIKELY TO HAVE

4142
02:37:43,840 --> 02:37:45,040
VICTIMIZATION THAN BE

4143
02:37:45,040 --> 02:37:46,240
PERPETRATORS SO THE COMMUNITY

4144
02:37:46,240 --> 02:37:48,240
HAS TO HAVE EXPERIENCE, I'D BE

4145
02:37:48,240 --> 02:37:52,680
HAPPY TO CONTRIBUTE TO THAT IF

4146
02:37:52,680 --> 02:37:54,280
FOLKS ARE IN CONCURMENT ABOUT

4147
02:37:54,280 --> 02:37:57,720
DOING A STATEMENT, IT WOULD BE

4148
02:37:57,720 --> 02:37:58,640
BENEFICIAL ESPECIALLY SINCE A

4149
02:37:58,640 --> 02:38:01,480
LOT OF FOLKS FEEL STRONGLY.

4150
02:38:01,480 --> 02:38:02,080
THANK YOU.

4151
02:38:02,080 --> 02:38:03,960
>>WHAT I'M HEARING IS

4152
02:38:03,960 --> 02:38:05,640
ENTHUSIASM FOR MAKING A

4153
02:38:05,640 --> 02:38:07,360
STATEMENT AS A COMMITTEE,

4154
02:38:07,360 --> 02:38:11,040
OBJECTING TO THE CHANGE, AND

4155
02:38:11,040 --> 02:38:16,680
ALSO I THINK IT WAS SUGGESTED TO

4156
02:38:16,680 --> 02:38:18,880
INVITE ACGME TO DISCUSS THE

4157
02:38:18,880 --> 02:38:22,920
CHANGE, A COUPLE THUMBS UP

4158
02:38:22,920 --> 02:38:23,960
COMING THROUGH.

4159
02:38:23,960 --> 02:38:25,320
>>DR. GORDON, WE HAVE A
LIMITED

4160
02:38:25,320 --> 02:38:25,880
TIME TO RESPOND.

4161
02:38:25,880 --> 02:38:29,160
THEY MAY NOT BE ABLE TO DO THAT

4162
02:38:29,160 --> 02:38:29,840
WITH US.

4163
02:38:29,840 --> 02:38:30,760
>>ABSOLUTELY.

4164
02:38:30,760 --> 02:38:32,440
SINCE TOMORROW IS THE DAY THAT

4165
02:38:32,440 --> 02:38:33,760
THEY HAVE LIMITED FOR PUBLIC

4166
02:38:33,760 --> 02:38:34,640
COMMENT, BUT I DON'T KNOW IF

4167
02:38:34,640 --> 02:38:35,960
THAT MEANS THEY ARE GOING TO

4168
02:38:35,960 --> 02:38:39,920
MAKE THE  CHANGE PRIOR.

4169
02:38:39,920 --> 02:38:46,000
WE CAN CERTAINLY FORMULATE THAT

4170
02:38:46,000 --> 02:38:46,800
SIMPLEST STATEMENT, AND SEND IT

4171
02:38:46,800 --> 02:38:49,280
TO THAT GROUP AS WELL AS PUSH IT

4172
02:38:49,280 --> 02:38:50,840
ON THE WEBSITE AND SEND IT TO

4173
02:38:50,840 --> 02:38:54,520
THE SECRETARY AS WELL.

4174
02:38:54,520 --> 02:38:57,200
LET ME JUST -- SORRY.

4175
02:38:57,200 --> 02:38:59,240
WAS THERE ANOTHER COMMENT SENT

4176
02:38:59,240 --> 02:39:04,880
IN VIA TEXT THAT WE NEED TO

4177
02:39:04,880 --> 02:39:05,080
READ?

4178
02:39:05,080 --> 02:39:06,400
>>CAMILLA MYSTERY HAD A

4179
02:39:06,400 --> 02:39:09,040
QUESTION, DO WE HAVE ANY IDEA ON

4180
02:39:09,040 --> 02:39:12,520
THE AAP, ASSOCIATION OF AMERICAN

4181
02:39:12,520 --> 02:39:13,360
PEDIATRICS, POSITION ON PROPOSED

4182
02:39:13,360 --> 02:39:13,600
CHANGES?

4183
02:39:13,600 --> 02:39:16,680
>>I DO NOT KNOW THAT.

4184
02:39:16,680 --> 02:39:17,320
DOES ANYONE KNOW THAT?

4185
02:39:17,320 --> 02:39:18,400
>>THIS IS PAUL.

4186
02:39:18,400 --> 02:39:20,600
I CAN REPORT THAT.

4187
02:39:20,600 --> 02:39:21,160
YES.

4188
02:39:21,160 --> 02:39:23,560
ONE OF THE AAPs SENIOR VICE

4189
02:39:23,560 --> 02:39:25,760
PRESIDENTS HAS EXPRESSED THEIR

4190
02:39:25,760 --> 02:39:32,000
OBJECTIONS TO THE ACGME

4191
02:39:32,000 --> 02:39:32,280
PROPOSAL.

4192
02:39:32,280 --> 02:39:32,880
>>OKAY.

4193
02:39:32,880 --> 02:39:35,480
AND A HAND IS RAISED AGAIN.

4194
02:39:35,480 --> 02:39:38,240
DO YOU HAVE ADDITIONAL STATEMENT

4195
02:39:38,240 --> 02:39:38,680
TO MAKE?

4196
02:39:38,680 --> 02:39:41,840
>>WANTED ME TO READ A
LINK THEY

4197
02:39:41,840 --> 02:39:43,760
SENT OVER THE CHAT.

4198
02:39:43,760 --> 02:39:49,560
THEY SENT THE SOCIETY FOR

4199
02:39:49,560 --> 02:39:53,760
DEVELOPMENTAL BEHAVIORAL

4200
02:39:53,760 --> 02:39:57,840
PEDIATRICS LINK, SDDP.ORG,

4201
02:39:57,840 --> 02:39:58,240
ACGME-INFORMATION.

4202
02:39:58,240 --> 02:39:58,880
>>OKAY.

4203
02:39:58,880 --> 02:40:01,720
THANK YOU VERY MUCH.

4204
02:40:01,720 --> 02:40:02,280
ALL RIGHT.

4205
02:40:02,280 --> 02:40:05,480
SO I THINK WHAT I'D LIKE TO DO

4206
02:40:05,480 --> 02:40:08,240
IS SUGGEST THAT SUSAN AND HER

4207
02:40:08,240 --> 02:40:11,400
STAFF CAN WRITE A

4208
02:40:11,400 --> 02:40:12,720
STRAIGHTFORWARD STATEMENT THAT

4209
02:40:12,720 --> 02:40:18,040
THE COMMITTEE -- GIVEN THE

4210
02:40:18,040 --> 02:40:20,480
IMPORTANCE OF EDUCATING

4211
02:40:20,480 --> 02:40:21,720
PEDIATRICIANS AROUND ABOUT

4212
02:40:21,720 --> 02:40:23,840
AUTISM AND INDIVIDUALS IN THE

4213
02:40:23,840 --> 02:40:26,200
AUTISM SPECTRUM AND IMPORTANCE

4214
02:40:26,200 --> 02:40:27,440
OF PEDIATRICIANS LEARNING

4215
02:40:27,440 --> 02:40:29,880
APPROPRIATELY THE CARE FOR SUCH

4216
02:40:29,880 --> 02:40:32,400
INDIVIDUALS, WE OBJECT TO THESE

4217
02:40:32,400 --> 02:40:34,680
CHANGES, AND THAT WE INVITE

4218
02:40:34,680 --> 02:40:37,440
MEMBERS OF THE ACGME GROUP

4219
02:40:37,440 --> 02:40:39,280
CONTEMPLATING CHANGES TO MEET

4220
02:40:39,280 --> 02:40:41,160
WITH US AT OUR NEXT MEETING.

4221
02:40:41,160 --> 02:40:45,320
SUSAN, DO YOU THINK CAN YOU

4222
02:40:45,320 --> 02:40:45,680
HANDLE DRAFTING?

4223
02:40:45,680 --> 02:40:47,040
>>YES, AND REACH OUT TO
MEMBERS

4224
02:40:47,040 --> 02:40:48,560
THAT MAY BE ABLE TO HELP WITH

4225
02:40:48,560 --> 02:40:51,880
THAT AND ONCE WE HAVE A DRAFT WE

4226
02:40:51,880 --> 02:40:55,160
CAN CIRCULATE IT AND WE CAN

4227
02:40:55,160 --> 02:41:00,720
EITHER VOTE ON IT BY E-MAIL OR

4228
02:41:00,720 --> 02:41:01,800
HAVE AN EXTRA MEETING.

4229
02:41:01,800 --> 02:41:06,440
>>I WOULD SAY LET'S VOTE
RIGHT

4230
02:41:06,440 --> 02:41:08,400
NOW, JUST STATEMENT WITH THE

4231
02:41:08,400 --> 02:41:10,360
UNDERSTAND YOU WILL RECEIVE A

4232
02:41:10,360 --> 02:41:11,320
DRAFT OF THE STATEMENT.

4233
02:41:11,320 --> 02:41:12,960
WE NEED TO DO THIS FAST.

4234
02:41:12,960 --> 02:41:14,280
WHAT'S A GOOD TIME THEY CAN

4235
02:41:14,280 --> 02:41:16,440
EXPECT THE E-MAIL FOR THE

4236
02:41:16,440 --> 02:41:18,760
STATEMENT BY?

4237
02:41:18,760 --> 02:41:21,240
WE WANT TO GET IT DONE TOMORROW.

4238
02:41:21,240 --> 02:41:24,920
>>YOU NEED TO SUBMIT FOR
PUBLIC

4239
02:41:24,920 --> 02:41:25,320
COMMENT TOMORROW?

4240
02:41:25,320 --> 02:41:27,840
>>NO, NO -- YES.

4241
02:41:27,840 --> 02:41:28,960
THAT'S WHAT I MEAN.

4242
02:41:28,960 --> 02:41:31,000
>>I'M NOT SURE IF WE
WOULD MAKE

4243
02:41:31,000 --> 02:41:32,240
THE DEADLINE.

4244
02:41:32,240 --> 02:41:33,280
WE CAN TRY TO, BUT --

4245
02:41:33,280 --> 02:41:35,600
>> WHAT TIME IS THE
DEADLINE?

4246
02:41:35,600 --> 02:41:36,320
>>WELL, IT'S TOMORROW.

4247
02:41:36,320 --> 02:41:37,360
>>ALL RIGHT.

4248
02:41:37,360 --> 02:41:39,320
SO LET'S AGREE ON WORDING RIGHT

4249
02:41:39,320 --> 02:41:40,000
NOW.

4250
02:41:40,000 --> 02:41:44,920
SO, I'M GOING TO GO AHEAD AND

4251
02:41:44,920 --> 02:41:46,800
TYPE SOMETHING INTO THE TEXT,

4252
02:41:46,800 --> 02:41:50,520
THE COMMENT LINE, I'LL JUST SAY

4253
02:41:50,520 --> 02:41:54,920
IT OUT LOUD.

4254
02:41:54,920 --> 02:41:57,560
INTERAGENCY AUTISM COORDINATING

4255
02:41:57,560 --> 02:42:01,000
COMMITTEE OBJECTS TO THE

4256
02:42:01,000 --> 02:42:11,000
PROPOSED CHANGES IN ACGME

4257
02:42:11,000 --> 02:42:14,160
REQUIREMENTS FOR THE INCLUSION

4258
02:42:14,160 --> 02:42:17,560
OF AN EXPERT -- SORRY, PAUL,

4259
02:42:17,560 --> 02:42:22,160
WHAT IS THE EXACT NATURE OF THE

4260
02:42:22,160 --> 02:42:23,280
REQUIREMENT, INCLUSION OF

4261
02:42:23,280 --> 02:42:24,280
EXPERT?

4262
02:42:24,280 --> 02:42:26,200
>>THEY ARE DROPPING
REQUIREMENT

4263
02:42:26,200 --> 02:42:28,320
FOSSA BOARD CERTIFIED

4264
02:42:28,320 --> 02:42:29,040
DEVELOPMENTAL BEHAVIORAL

4265
02:42:29,040 --> 02:42:31,160
PEDIATRICIAN ON THE --

4266
02:42:31,160 --> 02:42:35,600
>>HOLD ON.

4267
02:42:35,600 --> 02:42:37,080
OF A BOARD CERTIFIED

4268
02:42:37,080 --> 02:42:40,000
DEVELOPMENTAL BEHAVIORALLIST.

4269
02:42:40,000 --> 02:42:40,280
ALL RIGHT.

4270
02:42:40,280 --> 02:42:40,520
>>YES.

4271
02:42:40,520 --> 02:42:43,160
>>BEHAVIORAL
PEDIATRICIAN.

4272
02:42:43,160 --> 02:42:44,640
>>ON THE RESIDENCY
FACULTY.

4273
02:42:44,640 --> 02:42:55,200
>>ON THE RESIDENCY
FACULTY FOR

4274
02:42:55,600 --> 02:42:56,040
PEDIATRIC RESIDENCIES.

4275
02:42:56,040 --> 02:42:56,280
>>YES.

4276
02:42:56,280 --> 02:42:56,640
>>OKAY.

4277
02:42:56,640 --> 02:42:58,360
I'M GOING TO SAY STRONGLY

4278
02:42:58,360 --> 02:43:01,560
OBJECTS TO THE PROPOSED CHANGES

4279
02:43:01,560 --> 02:43:03,200
IN ACGME REQUIREMENTS FOR

4280
02:43:03,200 --> 02:43:04,160
INCLUSION OF BOARD CERTIFIED

4281
02:43:04,160 --> 02:43:06,360
DEVELOPMENTAL PEDIATRICIAN ON

4282
02:43:06,360 --> 02:43:10,840
THE RESIDENCY FACULTY FOR

4283
02:43:10,840 --> 02:43:13,800
PEDIATRIC RESIDENCIES.

4284
02:43:13,800 --> 02:43:22,040
WE URGE THE ACGME NOT TO ADOPT

4285
02:43:22,040 --> 02:43:24,880
THIS CHANGE.

4286
02:43:24,880 --> 02:43:29,160
WE INVITE REPRESENTATIVES OF THE

4287
02:43:29,160 --> 02:43:33,000
ACGME TO MEET WITH THE IACC AT A

4288
02:43:33,000 --> 02:43:34,080
FUTURE MEETING.

4289
02:43:34,080 --> 02:43:39,000
ALL RIGHT.

4290
02:43:39,000 --> 02:43:39,720
SO VERY SIMPLE.

4291
02:43:39,720 --> 02:43:43,760
>>IF I MAY,  DR. GORDON,
THERES

4292
02:43:43,760 --> 02:43:45,400
A SECOND CHANGE WHICH I

4293
02:43:45,400 --> 02:43:46,720
MENTIONED, THEY ARE DROPPING

4294
02:43:46,720 --> 02:43:49,680
REQUIREMENTS FOR EXPOSURE TO

4295
02:43:49,680 --> 02:43:51,760
SPECTRUM OF NORMAL DEVELOPMENT

4296
02:43:51,760 --> 02:43:52,800
AND LONGITUDINAL MANAGEMENT OF

4297
02:43:52,800 --> 02:43:53,640
CHILDREN WITH SPECIAL HEALTH

4298
02:43:53,640 --> 02:43:55,160
CARE NEEDS.

4299
02:43:55,160 --> 02:43:56,120
>>OKAY.

4300
02:43:56,120 --> 02:44:02,360
WE FURTHER OBJECT TO DROPPING

4301
02:44:02,360 --> 02:44:02,680
REQUIREMENT.

4302
02:44:02,680 --> 02:44:03,080
>>STRIKING, YEAH.

4303
02:44:03,080 --> 02:44:10,480
>>YOU KNOW WHAT?

4304
02:44:10,480 --> 02:44:11,040
GO AHEAD.

4305
02:44:11,040 --> 02:44:13,200
>>FOR EXPOSURE TO
SPECTRUM OF

4306
02:44:13,200 --> 02:44:15,840
NORMAL DEVELOPMENT AT ALL AGE

4307
02:44:15,840 --> 02:44:18,720
LEVELS AND THE LONGITUDINAL

4308
02:44:18,720 --> 02:44:25,720
MANAGEMENT OF CHILDREN WITH

4309
02:44:25,720 --> 02:44:27,800
SPECIAL HEALTH CARE NEEDS.

4310
02:44:27,800 --> 02:44:35,160
>>LONGITUDINAL -- OF
CHILDREN

4311
02:44:35,160 --> 02:44:36,760
WITH, SORRY, SAY IT AGAIN.

4312
02:44:36,760 --> 02:44:39,160
>>WITH SPECIAL HEALTH
CARE

4313
02:44:39,160 --> 02:44:44,560
NEEDS. 

4314
02:44:44,560 --> 02:44:45,720
ALICE, DID YOU WANT TO SAY

4315
02:44:45,720 --> 02:44:45,960
SOMETHING?

4316
02:44:45,960 --> 02:44:46,320
>>YES.

4317
02:44:46,320 --> 02:44:46,840
THANK YOU.

4318
02:44:46,840 --> 02:44:49,200
FIRST I WANT TO SAY I APPRECIATE

4319
02:44:49,200 --> 02:44:50,720
YOUR BEING THIS NIMBLE TO MAKE

4320
02:44:50,720 --> 02:44:52,200
THIS STATEMENT ABOUT SUCH AN

4321
02:44:52,200 --> 02:44:52,880
IMPORTANT ISSUE.

4322
02:44:52,880 --> 02:44:54,840
AND THEN I JUST WANT TO SAY I

4323
02:44:54,840 --> 02:44:56,040
THINK WE SHOULD FLIP THEM

4324
02:44:56,040 --> 02:44:59,240
BECAUSE I THINK THE ISSUE IS

4325
02:44:59,240 --> 02:45:00,840
TRAINING AND SHORT-TERM GETTING

4326
02:45:00,840 --> 02:45:02,960
RID OF DEVELOPMENTAL BEHAVIORAL

4327
02:45:02,960 --> 02:45:05,040
PEDIATRICIANSES IS GOING TO

4328
02:45:05,040 --> 02:45:06,880
DECIMATE THIS KIND OF TRAINING.

4329
02:45:06,880 --> 02:45:08,280
FOR ME PERSONALLY IF THERE ARE

4330
02:45:08,280 --> 02:45:10,160
OTHER PEOPLE WHO CAN DO THIS, I

4331
02:45:10,160 --> 02:45:13,040
DON'T HAVE A PROBLEM WITH THAT.

4332
02:45:13,040 --> 02:45:16,120
BUT RIGHT NOW IT'S A TERRIBLE

4333
02:45:16,120 --> 02:45:16,320
IDEA.

4334
02:45:16,320 --> 02:45:17,080
>>OKAY.

4335
02:45:17,080 --> 02:45:19,280
SO, WHAT YOU'RE SUGGESTING IS WE

4336
02:45:19,280 --> 02:45:22,560
JUST SWAP THE TWO.

4337
02:45:22,560 --> 02:45:24,320
NOW WOULD SO COORDINATING

4338
02:45:24,320 --> 02:45:26,480
COMMITTEE STRONGLY OBJECTS TO

4339
02:45:26,480 --> 02:45:27,440
DROPPING REQUIREMENTS FOR

4340
02:45:27,440 --> 02:45:29,320
EXPOSURE TO SPECTRUM OF NORMAL

4341
02:45:29,320 --> 02:45:30,880
DEVELOPMENT AT ALL AGES AND

4342
02:45:30,880 --> 02:45:31,840
LONGITUDINAL MANAGEMENT OF

4343
02:45:31,840 --> 02:45:33,280
CHILDREN WITH SPECIAL HEALTH

4344
02:45:33,280 --> 02:45:35,120
CARE NEEDS.

4345
02:45:35,120 --> 02:45:35,360
PERIOD.

4346
02:45:35,360 --> 02:45:37,680
WE FURTHER OBJECT TO DROPPING

4347
02:45:37,680 --> 02:45:39,840
REQUIREMENTS FOR INCLUSION OF A

4348
02:45:39,840 --> 02:45:40,680
BOARD CERTIFIED DEVELOPMENTAL

4349
02:45:40,680 --> 02:45:43,000
BEHAVIORAL PEDIATRICIAN ON THE

4350
02:45:43,000 --> 02:45:44,120
RESIDENCY AND FACULTY FOR

4351
02:45:44,120 --> 02:45:45,520
PEDIATRIC RESIDENCIES.

4352
02:45:45,520 --> 02:45:49,120
WE URGE THE ACGME NOT TO ADOPT

4353
02:45:49,120 --> 02:45:49,480
THESE CHANGES.

4354
02:45:49,480 --> 02:45:50,560
WE INVITE REPRESENTATIVES OF THE

4355
02:45:50,560 --> 02:45:53,400
ACGME TO MEET WITH THE IACC AT A

4356
02:45:53,400 --> 02:45:54,360
FUTURE MEETING.

4357
02:45:54,360 --> 02:45:56,920
I APOLOGIZE IN ADVANCE TO

4358
02:45:56,920 --> 02:45:59,320
MEMBERS, WE'RE DOING THIS VERY,

4359
02:45:59,320 --> 02:46:02,920
VERY QUICKLY, THERE ARE MEMBERS

4360
02:46:02,920 --> 02:46:04,880
OF THIS COMMITTEE WHO MAY NOT BE

4361
02:46:04,880 --> 02:46:06,520
ABLE TO PROCESS THIS QUICKLY

4362
02:46:06,520 --> 02:46:08,400
ENOUGH, ASSUMING WE HAVE AN

4363
02:46:08,400 --> 02:46:09,360
OVERWHELMINGLY POSITIVE VOTE

4364
02:46:09,360 --> 02:46:10,360
WE'LL MOVE FORWARD WITH THIS.

4365
02:46:10,360 --> 02:46:12,080
IF THE VOTE IS CLOSE WE MAY NEED

4366
02:46:12,080 --> 02:46:14,200
TO TAKE A PAUSE AND MAKE SURE WE

4367
02:46:14,200 --> 02:46:15,720
E-MAIL THE LANGUAGE OUT TO

4368
02:46:15,720 --> 02:46:17,720
EVERYONE SO EVERYONE GETS TO

4369
02:46:17,720 --> 02:46:18,680
CONSIDER IT.

4370
02:46:18,680 --> 02:46:21,160
DUE TO THE URGENCY OF GETTING

4371
02:46:21,160 --> 02:46:22,720
THIS INTO THE HANDS OF THE ACGME

4372
02:46:22,720 --> 02:46:24,080
BEFORE THE CLOSE OF PUBLIC

4373
02:46:24,080 --> 02:46:26,440
COMMENT PERIOD I'D LIKE TO VOTE

4374
02:46:26,440 --> 02:46:27,400
ON THIS TODAY REGARDLESS OF THE

4375
02:46:27,400 --> 02:46:29,960
FACT I KNOW SOME OF YOU WILL NOT

4376
02:46:29,960 --> 02:46:32,000
HAVE THE OPPORTUNITY TO FULLY

4377
02:46:32,000 --> 02:46:36,640
PROCESS THE LANGUAGE THAT WE'RE

4378
02:46:36,640 --> 02:46:37,280
ABOUT TO GIVE.

4379
02:46:37,280 --> 02:46:38,280
>>SORRY, SUSAN RIVERA.

4380
02:46:38,280 --> 02:46:41,040
I WANT TO MAKE ONE QUICK

4381
02:46:41,040 --> 02:46:41,600
SUGGESTION.

4382
02:46:41,600 --> 02:46:43,120
IT GOES TO THE LAST COMMENT.

4383
02:46:43,120 --> 02:46:46,160
COULD YOU IN THE CHAT JUST COPY

4384
02:46:46,160 --> 02:46:49,040
AND PASTE WHAT WE ARE VOTING ON?

4385
02:46:49,040 --> 02:46:51,120
SO WE CAN TAKE A QUICK LOOK AND

4386
02:46:51,120 --> 02:46:51,520
DO THE VOTE.

4387
02:46:51,520 --> 02:46:53,280
>>I'M GOING TO TRY TO DO
THAT.

4388
02:46:53,280 --> 02:46:56,560
WE'RE NOT SUPPOSED TO BE USING

4389
02:46:56,560 --> 02:46:58,040
THE CHAT FOR THAT FUNCTION.

4390
02:46:58,040 --> 02:47:00,840
>>CAN YOU SHARE A SCREEN
AND

4391
02:47:00,840 --> 02:47:01,080
SHOW US?

4392
02:47:01,080 --> 02:47:02,360
>>THAT'S A GREAT IDEA.

4393
02:47:02,360 --> 02:47:04,240
I THINK I CAN DO THAT.

4394
02:47:04,240 --> 02:47:06,120
>>THANK YOU, SUSAN.

4395
02:47:06,120 --> 02:47:06,400
>>YOU BET.

4396
02:47:06,400 --> 02:47:07,200
>>GREAT IDEA.

4397
02:47:07,200 --> 02:47:08,960
I'M JUST GOING TO COPY AND PASTE

4398
02:47:08,960 --> 02:47:13,040
THIS STUFF INTO WORD AND THEN I

4399
02:47:13,040 --> 02:47:14,080
WILL SHARE THE SCREEN.

4400
02:47:14,080 --> 02:47:15,640
I'LL MAKE SURE WE GET THE

4401
02:47:15,640 --> 02:47:16,200
LANGUAGE RIGHT.

4402
02:47:16,200 --> 02:47:18,400
I WANT TO MAKE SURE AS MANY

4403
02:47:18,400 --> 02:47:21,080
PEOPLE ARE ON BOARD AS POSSIBLE.

4404
02:47:21,080 --> 02:47:22,640
I THINK THAT'S A GREAT

4405
02:47:22,640 --> 02:47:23,120
SUGGESTION.

4406
02:47:23,120 --> 02:47:24,840
GIVE ME A MOMENT.

4407
02:47:24,840 --> 02:47:29,000
WHILE I DO THIS, WHY DON'T WE

4408
02:47:29,000 --> 02:47:31,040
MOVE ON.

4409
02:47:31,040 --> 02:47:32,480
AND TO THE NEXT COMMENT THAT

4410
02:47:32,480 --> 02:47:33,800
DENA WAS GOING TO MAKE.

4411
02:47:33,800 --> 02:47:35,640
I'M GOING TO FOCUS ON GETTING

4412
02:47:35,640 --> 02:47:36,760
THE LANGUAGE RIGHT.

4413
02:47:36,760 --> 02:47:38,400
WE'LL COME BACK TO IT AFTER

4414
02:47:38,400 --> 02:47:40,800
DENA'S COMMENT.

4415
02:47:40,800 --> 02:47:42,560
IS THAT OKAY, SUSAN?

4416
02:47:42,560 --> 02:47:45,520
>>YEAH, SOUNDS GREAT.

4417
02:47:45,520 --> 02:47:45,800
THANK YOU.

4418
02:47:45,800 --> 02:47:46,040
>>OKAY.

4419
02:47:46,040 --> 02:47:46,960
>>DR. GORDON, THANK YOU
SO MUCH

4420
02:47:46,960 --> 02:47:50,080
FOR YOUR QUICK ACTION ON THIS.

4421
02:47:50,080 --> 02:47:51,520
I'M ACTUALLY EMOTIONAL THAT

4422
02:47:51,520 --> 02:47:57,440
WE'RE TAKING SUCH A FIRM STANCE.

4423
02:47:57,440 --> 02:47:59,840
I JUST WANT TO GO BACK TO SOME

4424
02:47:59,840 --> 02:48:02,320
OF THE TALK TODAY ABOUT ADULT

4425
02:48:02,320 --> 02:48:03,280
ISSUES.

4426
02:48:03,280 --> 02:48:06,160
WHEN I WAS WORKING WITH JOHN TO

4427
02:48:06,160 --> 02:48:09,240
DRAFT COMMENTARY RESPONSE TO THE

4428
02:48:09,240 --> 02:48:13,760
NEW RATES, I WAS TAKING A HARD

4429
02:48:13,760 --> 02:48:15,280
LOOK AT RESEARCH GLOBALLY IN

4430
02:48:15,280 --> 02:48:17,040
TERMS OF ADULT OUTCOMES.

4431
02:48:17,040 --> 02:48:21,080
AND I JUST WANT TO MAKE A

4432
02:48:21,080 --> 02:48:26,040
STATEMENT THAT WE HAVE FAILED.

4433
02:48:26,040 --> 02:48:30,160
WE HAVE FAILED OUR COMMUNITY.

4434
02:48:30,160 --> 02:48:34,120
OUR FOCUS ON EMPLOYMENT AS THE

4435
02:48:34,120 --> 02:48:36,520
END-ALL, BE-ALL, OUR SUGGESTION

4436
02:48:36,520 --> 02:48:37,120
THAT SOCIAL SECURITY PROVIDES

4437
02:48:37,120 --> 02:48:43,080
PEOPLE A HIGH QUALITY OF LIFE,

4438
02:48:43,080 --> 02:48:46,040
OUR SUGGESTIONS PEOPLE DIAGNOSED

4439
02:48:46,040 --> 02:48:49,840
LATE NOT DISABLED, IT'S NOT IN

4440
02:48:49,840 --> 02:48:50,200
THE LITERATURE.

4441
02:48:50,200 --> 02:48:53,120
THE REALITY OF IT IS IF YOU

4442
02:48:53,120 --> 02:48:54,160
WEREN'T A DIAGNOSIS OF AUDIENCE

4443
02:48:54,160 --> 02:48:56,880
WHEREVER YOU LAND ON THE

4444
02:48:56,880 --> 02:48:59,440
SPECTRUM THIS INCLUDES INHERENT

4445
02:48:59,440 --> 02:49:00,280
FUNCTIONAL LIMITATIONS.

4446
02:49:00,280 --> 02:49:04,960
AND SO WHY WE TEND TO APPROACH

4447
02:49:04,960 --> 02:49:06,720
CHALLENGES IN THE WORKPLACE,

4448
02:49:06,720 --> 02:49:08,440
WE'RE FAILING TO RECOGNIZE THAT

4449
02:49:08,440 --> 02:49:10,400
THERE'S NO MECHANISM TO UNPACK

4450
02:49:10,400 --> 02:49:12,080
YEARS AND YEARS OF TRAUMA THAT

4451
02:49:12,080 --> 02:49:14,800
ENSUED FROM LACK OF DIAGNOSIS,

4452
02:49:14,800 --> 02:49:17,240
THERE'S NO MECHANISM IN OUR

4453
02:49:17,240 --> 02:49:19,840
THERAPEUTIC MODELS TO HELP

4454
02:49:19,840 --> 02:49:21,720
PEOPLE WITH FUNCTIONAL DAILY

4455
02:49:21,720 --> 02:49:22,800
INDEPENDENT LIVING SKILLS THAT

4456
02:49:22,800 --> 02:49:24,520
WERE NEVER TAUGHT BECAUSE THEY

4457
02:49:24,520 --> 02:49:27,360
WERE ON A DIPLOMA TRACK, AS IF

4458
02:49:27,360 --> 02:49:29,320
THEIR INTELLECT COULD SUDDENLY

4459
02:49:29,320 --> 02:49:30,600
OVERRIDE THIS OTHER IMPAIRED

4460
02:49:30,600 --> 02:49:36,000
PART OF THEIR NEUROLOGY.

4461
02:49:36,000 --> 02:49:40,160
AND SO I WOULD LIKE TO SEE IF WE

4462
02:49:40,160 --> 02:49:42,600
CAN'T SET ASIDE TIME OR SPACE TO

4463
02:49:42,600 --> 02:49:51,280
HAVE  AN IN-DEPTH CONVERSATION O

4464
02:49:51,280 --> 02:49:54,800
SHIFTING TRAJECTORY TO VARYING

4465
02:49:54,800 --> 02:49:58,720
ASPECTS OF AUTISM WE'VE ALMOST

4466
02:49:58,720 --> 02:50:00,120
BEEN SHAMED ABOUT TALKING ABOUT.

4467
02:50:00,120 --> 02:50:07,400
IF WE HAVE  HAVE HIGHER I.Q.s WE

4468
02:50:07,400 --> 02:50:11,240
SUPPOSED TO BE ABLE TO JUG AL

4469
02:50:11,240 --> 02:50:16,320
WORKEL A EL A -- JUGGLE A WORK/E

4470
02:50:16,320 --> 02:50:17,240
BALANCE.

4471
02:50:17,240 --> 02:50:18,360
MANY STATES DON'T EMPLOY

4472
02:50:18,360 --> 02:50:21,200
SERVICES FOR PEOPLE WHOSE

4473
02:50:21,200 --> 02:50:21,880
DIAGNOSIS DOESN'T MANIFEST

4474
02:50:21,880 --> 02:50:25,920
BEFORE 21 OR 25, THAT MEANS THAT

4475
02:50:25,920 --> 02:50:28,120
PEOPLE ARE LEFT INDIGENT,

4476
02:50:28,120 --> 02:50:29,080
UNHOUSED, WITH INCONSISTENT

4477
02:50:29,080 --> 02:50:30,760
HOUSING, LEFT WITHOUT MENTAL

4478
02:50:30,760 --> 02:50:32,480
HEALTH SERVICES THAT ARE

4479
02:50:32,480 --> 02:50:35,640
APPROPRIATE TO THIS POPULATION.

4480
02:50:35,640 --> 02:50:37,200
SO, GIVEN THE PUBLIC COMMENTS

4481
02:50:37,200 --> 02:50:39,720
THAT CONTINUE TO FLOW IN ABOUT

4482
02:50:39,720 --> 02:50:41,240
THE GAPS IN ADULT SERVICES, I

4483
02:50:41,240 --> 02:50:43,440
WOULD REALLY LOVE FOR US TO LOOK

4484
02:50:43,440 --> 02:50:44,840
AT THE SERVICE DELIVERY MODELS

4485
02:50:44,840 --> 02:50:47,360
AND LOOK AT THE RESEARCH ON

4486
02:50:47,360 --> 02:50:56,120
THESE OUTCOMES AS A CUMULATIVE

4487
02:50:56,120 --> 02:51:00,600
SET OF EVIDENCE TO REFRAME

4488
02:51:00,600 --> 02:51:01,120
OUTCOMES IN PRIORITIES.

4489
02:51:01,120 --> 02:51:02,800
>>THANK YOU.

4490
02:51:02,800 --> 02:51:04,080
WE'LL LOOK AT NEW OPPORTUNITIES,

4491
02:51:04,080 --> 02:51:08,680
WE MIGHT BE ABLE TO DO THAT. 

4492
02:51:08,680 --> 02:51:09,280
EXCELLENT SUGGESTION.

4493
02:51:09,280 --> 02:51:09,720
>>THANK YOU.

4494
02:51:09,720 --> 02:51:13,720
>>AND DO WE HAVE ANOTHER

4495
02:51:13,720 --> 02:51:13,960
COMMENT?

4496
02:51:13,960 --> 02:51:15,840
>>YEAH, THEY JUST SENT ME
A

4497
02:51:15,840 --> 02:51:18,200
COMMENT, THEY ALSO LET ME KNOW

4498
02:51:18,200 --> 02:51:23,040
THEY E-MAILED ACGME TO ASK FOR

4499
02:51:23,040 --> 02:51:25,120
EXTENDED DEADLINE AS AN

4500
02:51:25,120 --> 02:51:26,240
ACCOMMODATION.

4501
02:51:26,240 --> 02:51:27,720
THE COMMENT THEY SHARED HERE

4502
02:51:27,720 --> 02:51:29,960
SAYS THERE'S A WRITTEN COMMENT

4503
02:51:29,960 --> 02:51:34,400
RELATED TO SUBMINIMUM WAGE THEY

4504
02:51:34,400 --> 02:51:36,920
WANT TO ADDRESS, AS A CHILD WITH

4505
02:51:36,920 --> 02:51:39,240
INTELLECTUAL DISABILITY, THEY

4506
02:51:39,240 --> 02:51:40,440
WANT TO EMPHASIZE WITH WHAT

4507
02:51:40,440 --> 02:51:43,760
PARENTS SHARED ABOUT HOW THERE'S

4508
02:51:43,760 --> 02:51:45,720
MORE BENEFIT WORKING THAT

4509
02:51:45,720 --> 02:51:56,280
INCOME, SENSE OF RESPONSIBILITY,

4510
02:51:59,440 --> 02:52:00,680
JOY, SELF-ACTUALIZATION,

4511
02:52:00,680 --> 02:52:01,680
SUBMINIMUM WAGE IS UNACCEPTABLE,

4512
02:52:01,680 --> 02:52:04,600
IF IS ISN'T ABOUT THE MONEY WE

4513
02:52:04,600 --> 02:52:09,640
SHOULD DEVELOP MORE SERVICE TO

4514
02:52:09,640 --> 02:52:11,040
INTERNSHIPS, APPRENTICESHIPS, WE

4515
02:52:11,040 --> 02:52:12,440
PRESCEPTORSHIPS, ET CETERA.

4516
02:52:12,440 --> 02:52:13,920
>>THANK YOU.

4517
02:52:13,920 --> 02:52:20,080
AND I'LL HAVE ONE LAST COMMENT,

4518
02:52:20,080 --> 02:52:24,720
AND FROM IVANOVA AND RETURN TO

4519
02:52:24,720 --> 02:52:25,440
EARLIER ISSUE.

4520
02:52:25,440 --> 02:52:26,360
>>THIS IS IVANOVA SMITH.

4521
02:52:26,360 --> 02:52:28,120
THANK YOU TO THOSE WHO

4522
02:52:28,120 --> 02:52:28,760
COMMENTED.

4523
02:52:28,760 --> 02:52:32,080
I WANTED TO COMMENT ABOUT THE

4524
02:52:32,080 --> 02:52:33,600
DOCTORS FOR TRAINING, IT'S VERY

4525
02:52:33,600 --> 02:52:36,120
IMPORTANT IN THAT TRAINING THAT

4526
02:52:36,120 --> 02:52:39,320
THE DOCTORS ARE EDUCATED ON

4527
02:52:39,320 --> 02:52:41,040
HARMS OF MENTAL THEORY.

4528
02:52:41,040 --> 02:52:41,920
PEOPLE WITH INTELLECTUAL

4529
02:52:41,920 --> 02:52:43,680
DISABILITIES GROW UP LIKE ANYONE

4530
02:52:43,680 --> 02:52:48,600
ELSE, AND WE HAVE THE RIGHT TO

4531
02:52:48,600 --> 02:52:50,560
HAVE A SUPPORT INTO ADULTHOOD

4532
02:52:50,560 --> 02:52:52,640
AND NOT BE RESTRICTED IN OUR

4533
02:52:52,640 --> 02:52:57,720
ADULT LIFE SO I ENCOURAGE ALL

4534
02:52:57,720 --> 02:53:00,080
DOCTORS TO NOT USE MENTAL AGE

4535
02:53:00,080 --> 02:53:04,160
THEORY TO DESCRIBE A PERSON WITH

4536
02:53:04,160 --> 02:53:05,360
INTELLECTUAL DISABILITIES

4537
02:53:05,360 --> 02:53:06,760
BECAUSE POLICY-WISE IT CAUSES A

4538
02:53:06,760 --> 02:53:09,160
LOT OF HARM AND FOR PEOPLE WITH

4539
02:53:09,160 --> 02:53:10,920
IDD IT TEACHES US WE'RE NOT

4540
02:53:10,920 --> 02:53:13,640
ALLOWED TO GROW UP.

4541
02:53:13,640 --> 02:53:16,200
AND THEN WE GET -- WE DON'T --

4542
02:53:16,200 --> 02:53:18,600
WE'RE NOT ALLOWED TO LIVE A FULL

4543
02:53:18,600 --> 02:53:18,880
ADULT LIFE.

4544
02:53:18,880 --> 02:53:20,560
AND EVERYBODY SHOULD BE ABLE TO

4545
02:53:20,560 --> 02:53:23,720
LIVE A FULL ADULT LIFE.

4546
02:53:23,720 --> 02:53:24,920
THAT'S WHAT I WANTED TO SAY.

4547
02:53:24,920 --> 02:53:27,120
THANK YOU TO EVERYONE WHO HAS

4548
02:53:27,120 --> 02:53:27,400
COMMENTED.

4549
02:53:27,400 --> 02:53:28,120
>>THANK YOU.

4550
02:53:28,120 --> 02:53:31,160
SCOTT, CAN YOU MAKE YOUR COMMENT

4551
02:53:31,160 --> 02:53:31,600
BRIEF?

4552
02:53:31,600 --> 02:53:33,040
>>YEAH, OR I CAN -- CAN
WE COME

4553
02:53:33,040 --> 02:53:34,560
BACK TO TALKING ABOUT THE OTHER

4554
02:53:34,560 --> 02:53:37,520
PUBLIC COMMENTS AFTER YOU GO FOR

4555
02:53:37,520 --> 02:53:39,560
THIS STATEMENT, ARE WE GOING TO

4556
02:53:39,560 --> 02:53:41,800
RUN OUT OF TIME?

4557
02:53:41,800 --> 02:53:42,440
>>WE'RE ALREADY OVER
TIME.

4558
02:53:42,440 --> 02:53:44,760
>>I'LL BE BRIEF THEN.

4559
02:53:44,760 --> 02:53:47,240
I WANTED TO SAY THAT I

4560
02:53:47,240 --> 02:53:49,880
APPRECIATE THE EMPHASIS AND

4561
02:53:49,880 --> 02:53:51,240
ORAL-WRITTEN COMMENTS ON

4562
02:53:51,240 --> 02:53:52,160
AUGMENTED ALTERNATIVE

4563
02:53:52,160 --> 02:53:53,280
COMMUNICATION ACCESS FOR FOLKS.

4564
02:53:53,280 --> 02:53:55,160
WE SHOULD FOCUS MORE ON THAT.

4565
02:53:55,160 --> 02:53:58,440
AND THEN ALSO ON THE EMPLOYMENT

4566
02:53:58,440 --> 02:54:00,720
AND THERE WERE GREAT -- THERE

4567
02:54:00,720 --> 02:54:01,720
WAS GREAT EMPHASIS ON EMPLOYMENT

4568
02:54:01,720 --> 02:54:03,800
IN THE PUBLIC COMMENTS BUT I

4569
02:54:03,800 --> 02:54:06,000
WANTED TO HIGHLIGHT ONE THAT'S

4570
02:54:06,000 --> 02:54:07,240
MENTIONED, SPECIFICALLY A LARGE

4571
02:54:07,240 --> 02:54:09,080
PERCENTAGE OF AUTISTIC ADULTS

4572
02:54:09,080 --> 02:54:10,520
ARE UNEMPLOYED OR CHRONICALLY IN

4573
02:54:10,520 --> 02:54:11,920
A STATE OF BURNOUT, FIGHT OR

4574
02:54:11,920 --> 02:54:16,320
FLIGHT, DUE TO LACK OF

4575
02:54:16,320 --> 02:54:18,600
ACCOMODATIONS, UNDERSTANDING,

4576
02:54:18,600 --> 02:54:20,400
LARGELY LIVING IN NEUROTYPICALLY

4577
02:54:20,400 --> 02:54:27,840
BASED WORLD, IMPORTANT AS WE

4578
02:54:27,840 --> 02:54:30,680
ENHANCE ACCESS TO BETTER QUALITY

4579
02:54:30,680 --> 02:54:31,520
OF LIFE.

4580
02:54:31,520 --> 02:54:32,280
I APPRECIATE COMMENTS SHARED

4581
02:54:32,280 --> 02:54:33,080
LIKE THIS.

4582
02:54:33,080 --> 02:54:35,600
IT'S VALUABLE FOR US AS FAR AS

4583
02:54:35,600 --> 02:54:36,080
THE INPUT.

4584
02:54:36,080 --> 02:54:36,280
THANKS.

4585
02:54:36,280 --> 02:54:38,680
>>THANK YOU VERY MUCH.

4586
02:54:38,680 --> 02:54:43,120
WE'LL CLOSE OUR DISCUSSION ON

4587
02:54:43,120 --> 02:54:44,120
PUBLIC COMMENTS, WE'LL RETURN,

4588
02:54:44,120 --> 02:54:46,880
HOWEVER, TO THE SUGGESTION THAT

4589
02:54:46,880 --> 02:54:48,720
WE PROVIDE A STATEMENT TO THE

4590
02:54:48,720 --> 02:54:51,040
ACGME AND I WOULD SAY WE WOULD

4591
02:54:51,040 --> 02:54:52,440
ALSO SUPPLY THIS STATEMENT TO

4592
02:54:52,440 --> 02:54:55,280
THE SECRETARY AND ON THE

4593
02:54:55,280 --> 02:54:55,720
WEBSITE.

4594
02:54:55,720 --> 02:54:58,920
THIS IS THE STATEMENT I DRAFTED.

4595
02:54:58,920 --> 02:55:00,240
AND INCORPORATED YOUR COMMENTS.

4596
02:55:00,240 --> 02:55:03,600
I'M GOING TO READ IT TO YOU AS

4597
02:55:03,600 --> 02:55:03,800
WELL.

4598
02:55:03,800 --> 02:55:06,120
IT SHOULD BE VISIBLE ON YOUR

4599
02:55:06,120 --> 02:55:06,800
SCREENS.

4600
02:55:06,800 --> 02:55:09,760
LET ME TRY TO INCREASE THE FONT

4601
02:55:09,760 --> 02:55:12,280
TO MAKE SURE EVERYONE HAS THE

4602
02:55:12,280 --> 02:55:22,400
BEST CHANCE OF READING IT. 

4603
02:55:22,400 --> 02:55:25,720
DOES THAT WORK?

4604
02:55:25,720 --> 02:55:27,160
THE INTERAGENCY AUTISM

4605
02:55:27,160 --> 02:55:28,440
COORDINATING COMMITTEE STRONGLY

4606
02:55:28,440 --> 02:55:32,640
OBJECTS TO THE PROPOSED CHANGES

4607
02:55:32,640 --> 02:55:38,560
IN ACGME REQUIREMENTS.

4608
02:55:38,560 --> 02:55:38,960
OOPS.

4609
02:55:38,960 --> 02:55:40,960
IN THE ACGME REQUIREMENT FOR

4610
02:55:40,960 --> 02:55:42,600
EXPOSURE TO SPECTRUM OF NORMAL

4611
02:55:42,600 --> 02:55:44,800
DEVELOPMENT AT ALL AGES AND

4612
02:55:44,800 --> 02:55:45,800
LONGITUDINAL MANAGEMENT OF

4613
02:55:45,800 --> 02:55:47,320
CHILDREN WITH SPECIAL HEALTH

4614
02:55:47,320 --> 02:55:47,800
CARE NEEDS.

4615
02:55:47,800 --> 02:55:50,520
WE FURTHER OBJECT TO DROPPING

4616
02:55:50,520 --> 02:55:52,240
THE REQUIREMENT FOR INCLUSION OF

4617
02:55:52,240 --> 02:55:54,320
A BOARD CERTIFIED DEVELOPMENTAL

4618
02:55:54,320 --> 02:55:56,160
BEHAVIORAL PEDIATRICIAN ON THE

4619
02:55:56,160 --> 02:55:58,400
RESIDENCY FACULTY FOR PEDIATRIC

4620
02:55:58,400 --> 02:55:58,840
RESIDENCIES.

4621
02:55:58,840 --> 02:56:01,200
WE URGE THE ACGME NOT TO ADOPT

4622
02:56:01,200 --> 02:56:03,200
THESE CHANGES.

4623
02:56:03,200 --> 02:56:04,440
WE INVITE REPRESENTATIVES OF THE

4624
02:56:04,440 --> 02:56:06,920
ACGME TO MEET WITH THE IACC AT A

4625
02:56:06,920 --> 02:56:09,640
FUTURE MEETING TO DISCUSS THIS

4626
02:56:09,640 --> 02:56:10,320
IMPORTANT MATTER.

4627
02:56:10,320 --> 02:56:12,400
REALIZING WE NEED TO MAKE ONE

4628
02:56:12,400 --> 02:56:17,440
MORE CHANGE, I WILL READ IT ALL

4629
02:56:17,440 --> 02:56:17,960
AGAIN.

4630
02:56:17,960 --> 02:56:21,760
I MOVE THIS FOR PEDIATRIC

4631
02:56:21,760 --> 02:56:22,440
RESIDENCIES UP.

4632
02:56:22,440 --> 02:56:26,600
I'LL READ IT AGAIN.

4633
02:56:26,600 --> 02:56:29,760
AND THEN I'LL TAKE COMMENTS ON

4634
02:56:29,760 --> 02:56:31,320
THIS, IF THERE ARE OTHER MINOR

4635
02:56:31,320 --> 02:56:32,240
SUGGESTED CHANGES.

4636
02:56:32,240 --> 02:56:34,600
WE DON'T HAVE A LOT OF TIME TO

4637
02:56:34,600 --> 02:56:35,680
REWRITE IT.

4638
02:56:35,680 --> 02:56:36,800
INTERAGENCY AUTISM COORDINATING

4639
02:56:36,800 --> 02:56:38,400
COMMITTEE STRONGLY OBJECTS TO

4640
02:56:38,400 --> 02:56:41,240
THE PROPOSED CHANGES IN THE

4641
02:56:41,240 --> 02:56:42,480
ACGME REQUIREMENT FOR EXPOSURE

4642
02:56:42,480 --> 02:56:43,880
TO THE SPECTRUM OF NORMAL

4643
02:56:43,880 --> 02:56:46,200
DEVELOPMENT AT ALL AGES AND THE

4644
02:56:46,200 --> 02:56:47,480
LONGITUDINAL MANAGEMENT OF

4645
02:56:47,480 --> 02:56:49,280
CHILDREN WITH SPECIAL HEALTHCARE

4646
02:56:49,280 --> 02:56:50,720
NEEDS FOR PEDIATRIC RESIDENCIES.

4647
02:56:50,720 --> 02:56:53,240
WE FURTHER OBJECT TO DROPPING

4648
02:56:53,240 --> 02:56:56,240
REQUIREMENT FOR INCLUSION OF A

4649
02:56:56,240 --> 02:56:57,160
BOARD CERTIFIED DEVELOPMENTAL

4650
02:56:57,160 --> 02:56:59,200
BEHAVIORAL PEDIATRICIAN ON THE

4651
02:56:59,200 --> 02:57:00,400
RESIDENCY FACULTY.

4652
02:57:00,400 --> 02:57:03,800
WE URGE THE ACGME NOT TO ADOPT

4653
02:57:03,800 --> 02:57:04,720
THESE CHANGES.

4654
02:57:04,720 --> 02:57:05,960
WE INVITE REPRESENTATIVES OF THE

4655
02:57:05,960 --> 02:57:08,520
ACGME TO MEET WITH THE IACC AT A

4656
02:57:08,520 --> 02:57:11,640
FUTURE MEETING TO DISCUSS THIS

4657
02:57:11,640 --> 02:57:12,040
IMPORTANT MATTER.

4658
02:57:12,040 --> 02:57:15,840
DENA, DO YOU HAVE A SUGGESTION?

4659
02:57:15,840 --> 02:57:17,400
>>A SMALL ONE.

4660
02:57:17,400 --> 02:57:18,480
I APOLOGIZE, MY HOLLYWOOD

4661
02:57:18,480 --> 02:57:19,680
SQUARES DON'T WORK FOR ME.

4662
02:57:19,680 --> 02:57:21,200
THE COMMENT THAT WAS MADE

4663
02:57:21,200 --> 02:57:23,720
EARLIER ABOUT THE ROLE OF THESE

4664
02:57:23,720 --> 02:57:26,560
PEDIATRICIANS IN LIVES OF THE

4665
02:57:26,560 --> 02:57:28,720
FAMILIES, ANY ELEMENT OF THAT IN

4666
02:57:28,720 --> 02:57:33,360
TERMS OF LIKE THE JUSTIFICATION,

4667
02:57:33,360 --> 02:57:42,760
THE "SO WHAT" QUESTION MIGHT  BE

4668
02:57:42,760 --> 02:57:43,000
HELPFUL.

4669
02:57:43,000 --> 02:57:43,840
>>YOU'RE RIGHT.

4670
02:57:43,840 --> 02:57:45,400
I'M GOING TO HOLD OFF.

4671
02:57:45,400 --> 02:57:47,480
LET ME TAKE JOSEPH'S COMMENT

4672
02:57:47,480 --> 02:57:47,840
FIRST.

4673
02:57:47,840 --> 02:57:54,360
PERHAPS JOE HAS  SUGGESTION FOR

4674
02:57:54,360 --> 02:57:54,640
LANGUAGE.

4675
02:57:54,640 --> 02:57:55,480
>>VERY MINOR.

4676
02:57:55,480 --> 02:57:57,320
WE'RE ASSUMING THEY WILL KNOW

4677
02:57:57,320 --> 02:58:00,160
WHAT THE IACC IS, MAYBE AN

4678
02:58:00,160 --> 02:58:01,720
INTRODUCTORY SENTENCE THAT IT'S

4679
02:58:01,720 --> 02:58:04,880
A FEDERAL PANEL OR ADVISORY

4680
02:58:04,880 --> 02:58:12,400
PANEL, SOMETHING TO ORIENT THEM.

4681
02:58:12,400 --> 02:58:14,600
>>THANK YOU.

4682
02:58:14,600 --> 02:58:16,880
>>WE'LL ADD THAT
UNDERNEATH

4683
02:58:16,880 --> 02:58:18,880
THE -- I'LL PUT AN ASTERISK

4684
02:58:18,880 --> 02:58:19,240
HERE.

4685
02:58:19,240 --> 02:58:21,600
WE'LL ADD IT AS A FOOTNOTE

4686
02:58:21,600 --> 02:58:21,920
BELOW.

4687
02:58:21,920 --> 02:58:22,400
SOUND GOOD?

4688
02:58:22,400 --> 02:58:24,040
>>WE COULD INTRODUCE IT
WITH

4689
02:58:24,040 --> 02:58:25,680
EXPLAINING WHAT THE COMMITTEE IS

4690
02:58:25,680 --> 02:58:34,640
BEFORE WE MAKE THE

4691
02:58:34,640 --> 02:58:35,160
RECOMMENDATION.

4692
02:58:35,160 --> 02:58:39,120
>>OKAY.

4693
02:58:39,120 --> 02:58:44,000
MARENEKA? 

4694
02:58:44,000 --> 02:58:44,720
ANOTHER COMMENT?

4695
02:58:44,720 --> 02:58:45,800
>>VERY OFTEN ADULTS HAVE

4696
02:58:45,800 --> 02:58:46,360
REMAINED WITH PEDIATRICIANS

4697
02:58:46,360 --> 02:58:49,240
UNTIL THEY ARE IN THEIR

4698
02:58:49,240 --> 02:58:49,560
MID-20s.

4699
02:58:49,560 --> 02:58:52,040
AND SO THIS GOES FOR VERY LONG

4700
02:58:52,040 --> 02:58:53,640
TIME BECAUSE THERE AREN'T PEOPLE

4701
02:58:53,640 --> 02:58:58,680
ON THE OTHER SIDE QUALIFIED AND

4702
02:58:58,680 --> 02:59:01,880
READY TO HANDLE MANY ISSUES

4703
02:59:01,880 --> 02:59:02,280
IDENTIFIED EARLIER.

4704
02:59:02,280 --> 02:59:04,720
IF THAT PLAYS INTO IT.

4705
02:59:04,720 --> 02:59:05,720
>>THANK YOU, JALYNN.

4706
02:59:05,720 --> 02:59:08,120
WAS THERE A COMMENT THAT NEEDS

4707
02:59:08,120 --> 02:59:08,720
TO BE READ.

4708
02:59:08,720 --> 02:59:10,240
>>YES, THERE'S MANY
TEMPLATES

4709
02:59:10,240 --> 02:59:15,320
TO GO FROM ON THE SDDP.ORG

4710
02:59:15,320 --> 02:59:19,080
WEBSITE FOR ORGANIZATIONS,

4711
02:59:19,080 --> 02:59:21,200
PARENTS, PEDIATRICIANS.

4712
02:59:21,200 --> 02:59:23,560
DR. SCOTT ROBERTSON MENTIONED

4713
02:59:23,560 --> 02:59:25,480
BOARD CERTIFIED NEEDS A HIGH BEN

4714
02:59:25,480 --> 02:59:26,560
BETWEEN BOARD AND CERTIFIED AND

4715
02:59:26,560 --> 02:59:28,880
IF WE CAN MENTION HOW THE IACC

4716
02:59:28,880 --> 02:59:36,080
HELPS SUPPORT THE AUTISM CARES

4717
02:59:36,080 --> 02:59:38,200
ACT.

4718
02:59:38,200 --> 02:59:41,040
>>WILL THAT BE IN YOUR

4719
02:59:41,040 --> 02:59:41,720
EXPLANATION, SUSAN, THAT WE

4720
02:59:41,720 --> 02:59:43,320
SUPPORT THE AUTISM CARES ACT?

4721
02:59:43,320 --> 02:59:44,760
>>WE HAVE SOME STANDARD

4722
02:59:44,760 --> 02:59:48,440
LANGUAGE WHAT THE COMMITTEE IS.

4723
02:59:48,440 --> 02:59:50,360
>>I'M GOING TO ADD A
QUESTION

4724
02:59:50,360 --> 02:59:51,240
OF JUSTIFICATION.

4725
02:59:51,240 --> 02:59:52,880
PLEASE JUMP IN IF SOMEONE HAS A

4726
02:59:52,880 --> 02:59:57,760
BETTER WAY OF EXPRESSING IT.

4727
02:59:57,760 --> 03:00:00,200
>>THERE IS A MANUAL THAT
DOES

4728
03:00:00,200 --> 03:00:07,760
NEED TO BE --

4729
03:00:07,760 --> 03:00:08,960
>>DRAMATICALLY AND
ADVERSELY

4730
03:00:08,960 --> 03:00:13,640
AFFECT THE ABILITY OF

4731
03:00:13,640 --> 03:00:18,880
PEDIATRICIANS TO CARE FOR

4732
03:00:18,880 --> 03:00:24,000
INDIVIDUALS ON THE AUTISM

4733
03:00:24,000 --> 03:00:27,080
SPECTRUM, AND TO EDUCATE

4734
03:00:27,080 --> 03:00:31,800
PATIENTS AND FAMILIES.

4735
03:00:31,800 --> 03:00:33,120
AFFECTED BY AUTISM.

4736
03:00:33,120 --> 03:00:37,920
ANY OTHER SUGGESTIONS FOR THAT

4737
03:00:37,920 --> 03:00:38,200
SENTENCE?

4738
03:00:38,200 --> 03:00:48,680
>>CAN WE SAY EQUITABLY
CARE

4739
03:00:49,080 --> 03:00:49,160
FOR?

4740
03:00:49,160 --> 03:00:49,520
>>SURE.

4741
03:00:49,520 --> 03:00:49,800
EQUITABLY.

4742
03:00:49,800 --> 03:00:51,160
>>THANK YOU.

4743
03:00:51,160 --> 03:00:53,960
>>IT'S NOT ONLY
EQUITABLY, AND

4744
03:00:53,960 --> 03:00:54,280
EFFECTIVELY.

4745
03:00:54,280 --> 03:00:56,360
>>YES.

4746
03:00:56,360 --> 03:00:57,000
THANK YOU.

4747
03:00:57,000 --> 03:00:57,760
>>SOUND GOOD?

4748
03:00:57,760 --> 03:00:58,040
>>AMAZING.

4749
03:00:58,040 --> 03:01:01,880
I'M SO HAPPY YOU'RE DOING THIS.

4750
03:01:01,880 --> 03:01:02,120
>>OKAY.

4751
03:01:02,120 --> 03:01:04,640
SO NOW IT DOESN'T FIT ON ONE

4752
03:01:04,640 --> 03:01:04,880
PAGE.

4753
03:01:04,880 --> 03:01:06,960
YES, IS THERE ANOTHER COMMENT?

4754
03:01:06,960 --> 03:01:15,160
>>YOU TYPED EDUCATION
INSTEAD

4755
03:01:15,160 --> 03:01:15,480
OF EDUCATE.

4756
03:01:15,480 --> 03:01:16,480
>>THANK YOU.

4757
03:01:16,480 --> 03:01:16,680
>>JOSH.

4758
03:01:16,680 --> 03:01:18,040
>>PLEASE GO AHEAD.

4759
03:01:18,040 --> 03:01:28,080
>>YEAH, IT'S LARRY
WEXLER.

4760
03:01:28,080 --> 03:01:31,600
GIVEN THE IACC IS SUPPOSED TO BE

4761
03:01:31,600 --> 03:01:34,320
DRIVEN BY RESEARCH, WHAT WE'RE

4762
03:01:34,320 --> 03:01:36,040
SAYING I THINK HAS COMMON SENSE

4763
03:01:36,040 --> 03:01:36,800
TO IT.

4764
03:01:36,800 --> 03:01:38,520
BUT I WOULD ASK THE QUESTION OF

4765
03:01:38,520 --> 03:01:41,080
PEOPLE WHO KNOW MUCH MORE ABOUT

4766
03:01:41,080 --> 03:01:42,840
THE TRAINING OF PEDIATRICIANS

4767
03:01:42,840 --> 03:01:45,560
THAN I DO.

4768
03:01:45,560 --> 03:01:48,960
IS THERE ANY RESEARCH EVEN AT

4769
03:01:48,960 --> 03:01:51,360
THE DESCRIPTIVE LEVEL THAT

4770
03:01:51,360 --> 03:01:56,160
DEMONSTRATES THAT HAVING A BOARD

4771
03:01:56,160 --> 03:01:57,840
CERTIFIED DEVELOPMENTAL

4772
03:01:57,840 --> 03:02:00,680
BEHAVIORAL PEDIATRICIAN ON

4773
03:02:00,680 --> 03:02:05,480
FACULTY HAS A POSITIVE EFFECT?

4774
03:02:05,480 --> 03:02:08,320
BECAUSE I'M HOPING THAT THERE IS

4775
03:02:08,320 --> 03:02:10,720
SOMETHING OUT THERE, BECAUSE

4776
03:02:10,720 --> 03:02:12,400
STATING THAT, THAT WHAT WOULD

4777
03:02:12,400 --> 03:02:14,880
THAT BASED ON RESEARCH WE KNOW

4778
03:02:14,880 --> 03:02:18,480
THIS, I THINK WOULD MAKE THE

4779
03:02:18,480 --> 03:02:20,920
OVERALL STATEMENT MUCH MORE

4780
03:02:20,920 --> 03:02:21,480
POWERFUL.

4781
03:02:21,480 --> 03:02:23,520
I HAVE NO OBJECTION TO THE

4782
03:02:23,520 --> 03:02:23,800
STATEMENT.

4783
03:02:23,800 --> 03:02:29,480
LIKE I SAID, COMMON SENSE IS NOT

4784
03:02:29,480 --> 03:02:29,600
--

4785
03:02:29,600 --> 03:02:30,760
>>RIGHT.

4786
03:02:30,760 --> 03:02:35,920
YOU'RE ASKING THE QUESTION, CAN

4787
03:02:35,920 --> 03:02:38,360
WE HONESTLY ARGUE FOR THAT

4788
03:02:38,360 --> 03:02:40,760
SECOND SENTENCE, THAT THIS WAS

4789
03:02:40,760 --> 03:02:41,920
AN EVIDENCE-BASED APPROACH.

4790
03:02:41,920 --> 03:02:43,600
I DO NOT KNOW OF ANY RESEARCH IN

4791
03:02:43,600 --> 03:02:44,120
THAT AREA.

4792
03:02:44,120 --> 03:02:45,440
DOES ANYONE ON THE COMMITTEE

4793
03:02:45,440 --> 03:02:48,720
KNOW OF ANY SPECIFIC RESEARCH TO

4794
03:02:48,720 --> 03:02:49,680
SUPPORT THAT STATEMENT?

4795
03:02:49,680 --> 03:02:53,520
>>THERE CANNOT BE ANY

4796
03:02:53,520 --> 03:02:54,720
CONTROLLED RESEARCH ON THAT

4797
03:02:54,720 --> 03:02:56,040
BECAUSE BEFORE THERE WERE

4798
03:02:56,040 --> 03:03:00,000
DEVELOPMENTAL BEHAVIORAL

4799
03:03:00,000 --> 03:03:04,920
PEDIATRICIANS IT WAS NOT

4800
03:03:04,920 --> 03:03:05,920
REQUIRED.

4801
03:03:05,920 --> 03:03:07,760
ACGME ADDED, SO ANY COMPARISON

4802
03:03:07,760 --> 03:03:09,520
WOULD BE CONFOUNDED BY THE

4803
03:03:09,520 --> 03:03:11,200
CHANGE, IF YOU WILL.

4804
03:03:11,200 --> 03:03:13,360
>>PAUL, I GUESS I WAS --
I'M

4805
03:03:13,360 --> 03:03:15,800
SURE YOU'RE RIGHT.

4806
03:03:15,800 --> 03:03:20,600
I WAS JUST LOOKING IS THERE EVEN

4807
03:03:20,600 --> 03:03:21,560
ANECDOTAL RESEARCH IN PLACE.

4808
03:03:21,560 --> 03:03:24,960
>>YEAH, I WOULDN'T BE

4809
03:03:24,960 --> 03:03:27,280
COMFORTABLE ADDING RESEARCH

4810
03:03:27,280 --> 03:03:27,880
SUPPORTS STATEMENT WITHOUT

4811
03:03:27,880 --> 03:03:35,160
SOMETHING A LITTLE BIT MORE THAN

4812
03:03:35,160 --> 03:03:35,440
ANECDOTAL.

4813
03:03:35,440 --> 03:03:37,320
>>MY PUBLIC'S PARTNER
DOING

4814
03:03:37,320 --> 03:03:38,160
RESEARCH ON RSV WAS CHIEF

4815
03:03:38,160 --> 03:03:39,720
PEDIATRICIAN OF THE AIR FORCE

4816
03:03:39,720 --> 03:03:44,080
AND ALSO THE HEAD OF THE

4817
03:03:44,080 --> 03:03:45,200
UNIFORMED SERVICES.

4818
03:03:45,200 --> 03:03:48,040
>>JALYNN, I'M GOING TO

4819
03:03:48,040 --> 03:03:50,840
INTERRUPT BECAUSE WE'RE RUNNING

4820
03:03:50,840 --> 03:03:51,200
LATE NOW.

4821
03:03:51,200 --> 03:03:53,080
>>WOULD A STATEMENT FROM
HIM BE

4822
03:03:53,080 --> 03:03:53,320
HELPFUL?

4823
03:03:53,320 --> 03:03:54,920
>>AT THIS POINT I DON'T
THINK

4824
03:03:54,920 --> 03:03:56,360
WE CAN ADD ANYTHING TO THIS

4825
03:03:56,360 --> 03:03:58,240
GIVEN THAT WE WANT TO GET IT OUT

4826
03:03:58,240 --> 03:03:58,480
TOMORROW.

4827
03:03:58,480 --> 03:04:00,640
IF THE COMMITTEE WANTED TO

4828
03:04:00,640 --> 03:04:01,000
INVESTIGATE --

4829
03:04:01,000 --> 03:04:02,600
>>I CAN GET HIM ON THE
PHONE

4830
03:04:02,600 --> 03:04:03,040
RIGHT NOW.

4831
03:04:03,040 --> 03:04:04,720
>>I DON'T THINK THAT
WOULD BE

4832
03:04:04,720 --> 03:04:05,760
HELPFUL AT THIS POINT.

4833
03:04:05,760 --> 03:04:08,160
HE'S NOT A MEMBER OF THE

4834
03:04:08,160 --> 03:04:08,440
COMMITTEE.

4835
03:04:08,440 --> 03:04:09,320
I APPRECIATE THAT THOUGHT.

4836
03:04:09,320 --> 03:04:12,880
WHAT I'D LIKE TO DO NOW IS ASK

4837
03:04:12,880 --> 03:04:18,360
IF SOMEONE MIGHT MOVE THAT WE

4838
03:04:18,360 --> 03:04:20,120
SEND THIS STATEMENT THAT WE'VE

4839
03:04:20,120 --> 03:04:22,600
DRAFTED TO THE ACGME AND COPY

4840
03:04:22,600 --> 03:04:24,920
THE SECRETARY, DO I HAVE A

4841
03:04:24,920 --> 03:04:25,160
MOTION?

4842
03:04:25,160 --> 03:04:26,800
THANK YOU.

4843
03:04:26,800 --> 03:04:27,840
A SECOND?

4844
03:04:27,840 --> 03:04:29,840
>>SECOND.

4845
03:04:29,840 --> 03:04:30,080
>>SECOND.

4846
03:04:30,080 --> 03:04:30,360
>>SECOND.

4847
03:04:30,360 --> 03:04:30,680
>>OKAY.

4848
03:04:30,680 --> 03:04:33,040
LET ME ASK EVERYONE IN FAVOR TO

4849
03:04:33,040 --> 03:04:35,680
RAISE THEIR HANDS ON THE ZOOM

4850
03:04:35,680 --> 03:04:36,960
CALL.

4851
03:04:36,960 --> 03:04:39,360
USING THE ZOOM.

4852
03:04:39,360 --> 03:04:43,840
IF YOU'RE UNABLE PLEASE

4853
03:04:43,840 --> 03:04:47,240
E-MAIL -- PLEASE, SORRY, TEXT

4854
03:04:47,240 --> 03:04:50,840
THE -- SEND COMMENTS IN THE CHAT

4855
03:04:50,840 --> 03:04:53,240
OR OTHERWISE UNMUTE AND SAY THAT

4856
03:04:53,240 --> 03:04:54,440
YOU'RE -- LOOKS LIKE EVERYONE IS

4857
03:04:54,440 --> 03:05:01,800
ABLE TO RAISE THEIR HANDS. 

4858
03:05:01,800 --> 03:05:04,840
DO WE HAVE A FULL COUNT YET?

4859
03:05:04,840 --> 03:05:06,280
>>25 PARTICIPANTS THAT
RAISED

4860
03:05:06,280 --> 03:05:09,120
THEIR HAND ACCORDING TO WHAT I

4861
03:05:09,120 --> 03:05:09,760
WAS ABLE TO SEE.

4862
03:05:09,760 --> 03:05:11,320
>>THANK YOU.

4863
03:05:11,320 --> 03:05:16,440
WOULD EVERYONE NOW LOWER THEIR

4864
03:05:16,440 --> 03:05:16,640
HANDS.

4865
03:05:16,640 --> 03:05:20,960
>>I WAS TOO SLOW IN
RAISING MY

4866
03:05:20,960 --> 03:05:21,240
HAND.

4867
03:05:21,240 --> 03:05:25,720
>>WE'LL MAKE IT 26.

4868
03:05:25,720 --> 03:05:26,800
THANK YOU, IVANOVA.

4869
03:05:26,800 --> 03:05:28,480
ALICE, LOWER YOUR HAND.

4870
03:05:28,480 --> 03:05:29,440
NOW EVERYONE AGAINST SENDING

4871
03:05:29,440 --> 03:05:30,440
THIS STATEMENT AS WRITTEN PLEASE

4872
03:05:30,440 --> 03:05:33,080
RAISE YOUR HAND.

4873
03:05:33,080 --> 03:05:39,960
OR SO STATE VERBALLY.

4874
03:05:39,960 --> 03:05:43,800
I SEE NO HANDS RAISED, NO ONE IS

4875
03:05:43,800 --> 03:05:45,000
VERBALLY STATING THEY ARE

4876
03:05:45,000 --> 03:05:45,840
AGAINST.

4877
03:05:45,840 --> 03:05:48,200
WOULD ANYONE LIKE TO ABSTAIN

4878
03:05:48,200 --> 03:05:50,920
FROM THIS VOTE, ANYONE WHO WANTS

4879
03:05:50,920 --> 03:05:52,920
TO ABSTAIN FROM VOTING ON

4880
03:05:52,920 --> 03:05:53,880
SENDING THIS STATEMENT PLEASE

4881
03:05:53,880 --> 03:05:55,760
RAISE YOUR HAND OR SO INDICATE

4882
03:05:55,760 --> 03:05:58,160
VERBALLY.

4883
03:05:58,160 --> 03:05:59,920
 

4884
03:05:59,920 --> 03:06:03,200
WE HAVE ONE ABSTENTION.

4885
03:06:03,200 --> 03:06:05,240
 

4886
03:06:05,240 --> 03:06:08,000
TWO ABSTENTIONS.

4887
03:06:08,000 --> 03:06:10,040
 

4888
03:06:10,040 --> 03:06:10,880
THREE ABSTENTIONS.

4889
03:06:10,880 --> 03:06:13,680
ANY OTHERS?

4890
03:06:13,680 --> 03:06:15,680
 

4891
03:06:15,680 --> 03:06:15,920
OKAY.

4892
03:06:15,920 --> 03:06:20,480
YOU MAY LOWER YOUR HANDS.

4893
03:06:20,480 --> 03:06:23,320
25 FOR, NO AGAINST, 3

4894
03:06:23,320 --> 03:06:24,200
ABSTENTIONS, MAYBE 4

4895
03:06:24,200 --> 03:06:26,160
ABSTENTIONS, ONE CAME IN LATE.

4896
03:06:26,160 --> 03:06:28,120
WAS THAT YOUR INTENT, JODY?

4897
03:06:28,120 --> 03:06:28,360
>>YES.

4898
03:06:28,360 --> 03:06:30,120
>>OKAY.

4899
03:06:30,120 --> 03:06:33,600
THANK YOU, FOUR ABSTENTIONS.

4900
03:06:33,600 --> 03:06:34,120
MOTION PASSES.

4901
03:06:34,120 --> 03:06:35,360
WE WILL INCLUDE AN EXPLANATION

4902
03:06:35,360 --> 03:06:38,000
OF WHAT THE IACC IS IN THIS AND

4903
03:06:38,000 --> 03:06:39,640
SUBMIT TO THE ACGME FOR COMMENT

4904
03:06:39,640 --> 03:06:43,880
AS WELL AS SEND A COPY OF THIS

4905
03:06:43,880 --> 03:06:45,320
FROM THE IACC TO THE SECRETARY

4906
03:06:45,320 --> 03:06:46,880
AND POST THE STATEMENT ON THE

4907
03:06:46,880 --> 03:06:47,720
WEBSITE.

4908
03:06:47,720 --> 03:06:49,680
THANK YOU VERY MUCH, EVERYONE.

4909
03:06:49,680 --> 03:06:54,600
I THINK THAT WAS A WONDERFUL WAY

4910
03:06:54,600 --> 03:06:55,320
TO RESPOND APPROPRIATELY TO

4911
03:06:55,320 --> 03:06:57,040
PUBLIC COMMENTS THIS WAY.

4912
03:06:57,040 --> 03:06:59,000
WITH THAT I'M GOING TO AGAIN

4913
03:06:59,000 --> 03:07:03,280
TURN THE MEETING OVER TO SUSAN.

4914
03:07:03,280 --> 03:07:06,440
I HAVE TO RESUME TAKING CARE OF

4915
03:07:06,440 --> 03:07:08,320
THE FAMILY EMERGENCY, AND WISH

4916
03:07:08,320 --> 03:07:11,760
YOU ALL A VERY INFORMATIVE AND

4917
03:07:11,760 --> 03:07:17,760
ENJOYABLE REST OF THE MEETING.

4918
03:07:17,760 --> 03:07:18,000
BYE-BYE.

4919
03:07:18,000 --> 03:07:19,480
>>THANK YOU.

4920
03:07:19,480 --> 03:07:24,200
WE WERE SCHEDULED TO TAKE A

4921
03:07:24,200 --> 03:07:30,000
BREAK, AND -- WE WERE SCHEDULED

4922
03:07:30,000 --> 03:07:31,440
TO TAKE A BREAK BUT WE'RE BEHIND

4923
03:07:31,440 --> 03:07:33,280
TIME SO I'M GOING TO PROPOSE WE

4924
03:07:33,280 --> 03:07:35,240
JUST START THE NEXT PANEL AND IF

4925
03:07:35,240 --> 03:07:40,200
ANYONE NEEDS TO TAKE A QUICK

4926
03:07:40,200 --> 03:07:41,920
BREAK JUST TAKE THAT QUICK BREAK

4927
03:07:41,920 --> 03:07:43,360
AND WE'LL RETURN.

4928
03:07:43,360 --> 03:07:46,840
I WILL HAND OVER TO SHELLI TO

4929
03:07:46,840 --> 03:07:48,160
PROVIDE THE WELCOME BUT I'M ALL

4930
03:07:48,160 --> 03:07:49,920
EXCITED ABOUT THIS PANEL AND

4931
03:07:49,920 --> 03:07:53,400
LOOKING FORWARD TO HEARING ALL

4932
03:07:53,400 --> 03:07:54,080
THESE PRESENTATIONS.

4933
03:07:54,080 --> 03:07:55,080
>>GREAT.

4934
03:07:55,080 --> 03:07:56,240
THANKS, SUSAN.

4935
03:07:56,240 --> 03:07:59,120
THANKS, EVERYONE, FOR YOUR

4936
03:07:59,120 --> 03:08:01,280
ACTIVE PARTICIPATION IN THE LAST

4937
03:08:01,280 --> 03:08:01,800
SESSION.

4938
03:08:01,800 --> 03:08:02,920
MOVING RIGHT ALONG I WANT TO

4939
03:08:02,920 --> 03:08:05,440
INTRODUCE OUR NEXT SET OF

4940
03:08:05,440 --> 03:08:06,880
PRESENTATIONS AND PRESENTERS.

4941
03:08:06,880 --> 03:08:08,400
THIS SET OF PRESENTATIONS WILL

4942
03:08:08,400 --> 03:08:11,880
FOCUS ON THE TOPIC OF RACIAL

4943
03:08:11,880 --> 03:08:15,400
DISPARITIES AND RACIAL EQUITY

4944
03:08:15,400 --> 03:08:17,920
AND AUTISM OUTCOME.

4945
03:08:17,920 --> 03:08:19,800
FEDERAL GOVERNMENT IS COMMITTED

4946
03:08:19,800 --> 03:08:21,440
TO REDUCE DISPARITIES AND REDUCE

4947
03:08:21,440 --> 03:08:23,400
EQUITY, THE IACC HAS ALREADY

4948
03:08:23,400 --> 03:08:25,960
IDENTIFIED THIS AREA IN THE

4949
03:08:25,960 --> 03:08:28,760
UPCOMING IACC STRATEGIC PLAN AS

4950
03:08:28,760 --> 03:08:30,840
AN IMPORTANT PRIORITY FOR FUTURE

4951
03:08:30,840 --> 03:08:31,400
ACTIVITIES.

4952
03:08:31,400 --> 03:08:33,920
WE WILL HAVE TWO RESEARCH

4953
03:08:33,920 --> 03:08:38,960
PRESENTATIONS, AND WE'LL HEAR

4954
03:08:38,960 --> 03:08:40,160
FROM PERSPECTIVES FROM THE

4955
03:08:40,160 --> 03:08:45,600
COMMUNITY ABOUT  LIVED

4956
03:08:45,600 --> 03:08:46,920
EXPERIENCE, WE'LL HAVE TIME FOR

4957
03:08:46,920 --> 03:08:50,320
QUESTIONS AND DISCUSSIONS FROM

4958
03:08:50,320 --> 03:08:56,800
IACC MEMBERS.

4959
03:08:56,800 --> 03:08:59,440
DR. BRIAN BOYD, WILLIAM C.

4960
03:08:59,440 --> 03:09:01,240
FRIDAY PROFESSORRED IN

4961
03:09:01,240 --> 03:09:02,680
INDICATION, INTERIM DIRECTOR OF

4962
03:09:02,680 --> 03:09:04,880
THE FRANK PORTER GRAHAM CHILD

4963
03:09:04,880 --> 03:09:05,440
DEVELOPMENT INSTITUTE,

4964
03:09:05,440 --> 03:09:07,160
UNIVERSITY OF NORTH CAROLINA AT

4965
03:09:07,160 --> 03:09:08,720
CHAPEL HILL.

4966
03:09:08,720 --> 03:09:11,920
AS WELL AS DR. JILL LOCKE,

4967
03:09:11,920 --> 03:09:13,880
ASSOCIATE PROFESSOR OF

4968
03:09:13,880 --> 03:09:14,960
PSYCHIATRY AND BEHAVIORAL

4969
03:09:14,960 --> 03:09:18,000
SCIENCES AT THE UNIVERSITY OF

4970
03:09:18,000 --> 03:09:18,560
WASHINGTON.

4971
03:09:18,560 --> 03:09:24,440
THANK YOU AND WELCOME TO BOTH OF

4972
03:09:24,440 --> 03:09:24,640
YOU.

4973
03:09:24,640 --> 03:09:25,360
>>THANK YOU.

4974
03:09:25,360 --> 03:09:28,520
JILL AND I ARE HAPPY TO

4975
03:09:28,520 --> 03:09:31,680
VIRTUALLY ENGAGE YOU IN THIS

4976
03:09:31,680 --> 03:09:33,000
CONVERSATION TODAY ABOUT

4977
03:09:33,000 --> 03:09:35,000
UNDERSTANDING THE IMPACT OF

4978
03:09:35,000 --> 03:09:36,200
RACISM AND DISCRIMINATION IN

4979
03:09:36,200 --> 03:09:37,480
AUTISM RESEARCH.

4980
03:09:37,480 --> 03:09:39,920
WE'RE GOING TO TAG TEAM BUT I'M

4981
03:09:39,920 --> 03:09:42,080
GOING TO START TODAY.

4982
03:09:42,080 --> 03:09:43,840
I WANT TO THANK SUSAN DANIELS

4983
03:09:43,840 --> 03:09:46,880
AND OTHER MEMBERS OF THE IACC

4984
03:09:46,880 --> 03:09:48,880
FOR ORGANIZING THIS DISCUSSION.

4985
03:09:48,880 --> 03:09:50,720
IT'S IMPORTANT TO ACKNOWLEDGE

4986
03:09:50,720 --> 03:09:52,600
THAT AUTISTIC PEOPLE HAVE

4987
03:09:52,600 --> 03:09:53,960
MULTIPLE CULTURAL IDENTITIES

4988
03:09:53,960 --> 03:09:57,080
THAT THEY ARE NAVIGATING.

4989
03:09:57,080 --> 03:09:59,840
SUCH AS BEING BLACK AND AUTISTIC

4990
03:09:59,840 --> 03:10:05,480
CAN AFFECT OUTCOMES BECAUSE OF

4991
03:10:05,480 --> 03:10:06,840
LARGER SOCIETAL ISSUES LIKE

4992
03:10:06,840 --> 03:10:08,120
ABLEISM AND RACISM.

4993
03:10:08,120 --> 03:10:09,520
RACISM HAS PUBLIC HEALTH

4994
03:10:09,520 --> 03:10:09,880
CONSEQUENCES.

4995
03:10:09,880 --> 03:10:14,240
I WANT TO READ A STATEMENT FROM

4996
03:10:14,240 --> 03:10:17,520
THE CDC WEBSITE. 

4997
03:10:17,520 --> 03:10:19,280
DATA SHOW RACIAL AND ETHNIC

4998
03:10:19,280 --> 03:10:20,160
MINORITY GROUPS THROUGHOUT THE

4999
03:10:20,160 --> 03:10:21,600
UNITED STATES EXPERIENCE HIGHER

5000
03:10:21,600 --> 03:10:24,000
RATES OF ILLNESS AND DEATH

5001
03:10:24,000 --> 03:10:28,280
ACROSS A WIDE RANGE OF HEALTH

5002
03:10:28,280 --> 03:10:30,240
CONDITIONS, INCLUDING DIABETES,

5003
03:10:30,240 --> 03:10:31,800
HYPERTENSION, OBESITY, ASTHMA,

5004
03:10:31,800 --> 03:10:32,640
HEART DISEASE.

5005
03:10:32,640 --> 03:10:35,040
WHEN COMPARED TO THEIR WHITE

5006
03:10:35,040 --> 03:10:35,920
COUNTERPARTS.

5007
03:10:35,920 --> 03:10:39,000
THIS STATEMENT GOES ON TO SAY TO

5008
03:10:39,000 --> 03:10:40,520
BUILD A HEALTHIER AMERICA FOR

5009
03:10:40,520 --> 03:10:45,720
ALL, WE MUST CONFRONT SYSTEMS

5010
03:10:45,720 --> 03:10:52,560
AND POLICIES THAT RESULTED IN

5011
03:10:52,560 --> 03:10:56,400
GENERATIONAL INJUSTICE GIVING

5012
03:10:56,400 --> 03:10:57,720
RISE TO INEQUITIES, AND

5013
03:10:57,720 --> 03:11:05,360
SOMETHING WE MUST DO TO ASSURE

5014
03:11:05,360 --> 03:11:06,000
BEING ABLE TO THRIVE.

5015
03:11:06,000 --> 03:11:07,240
NEXT SLIDE PLEASE.

5016
03:11:07,240 --> 03:11:09,480
REALLY THIS PRESENTATION IS SORT

5017
03:11:09,480 --> 03:11:11,800
OF ORGANIZED INTO FOUR PARTS OR

5018
03:11:11,800 --> 03:11:12,880
SECTIONS, THE FIRST PART I'M

5019
03:11:12,880 --> 03:11:15,760
GOING TO TAKE IS TO PROVIDE SOME

5020
03:11:15,760 --> 03:11:16,920
CONTEXT FOR TODAY'S

5021
03:11:16,920 --> 03:11:17,760
PRESENTATIONS.

5022
03:11:17,760 --> 03:11:20,320
I'M GOING TO START BY DISCUSSING

5023
03:11:20,320 --> 03:11:22,360
SOME RELEVANT TERMS AND HOW

5024
03:11:22,360 --> 03:11:25,040
RACISM OPERATES IN U.S. SOCIETY.

5025
03:11:25,040 --> 03:11:27,680
THEN JILL IS GOING TO WALK US

5026
03:11:27,680 --> 03:11:28,960
THROUGH EXAMPLES OF RACISM'S

5027
03:11:28,960 --> 03:11:30,840
IMPACT ON AUTISTIC PEOPLE OF

5028
03:11:30,840 --> 03:11:32,480
COLOR AND WHAT WE'RE LEARNING

5029
03:11:32,480 --> 03:11:33,360
FROM SOME RESEARCH THAT'S

5030
03:11:33,360 --> 03:11:35,640
HAPPENING IN THE SPACE RIGHT NOW

5031
03:11:35,640 --> 03:11:38,920
IN THE FIELD AND WE'LL DISCUSS

5032
03:11:38,920 --> 03:11:42,240
SOME COMMUNITY PARTNER

5033
03:11:42,240 --> 03:11:44,720
SOLUTIONS, THERE ARE COMMUNITY

5034
03:11:44,720 --> 03:11:46,280
GROUPS DOING WONDERFUL THINGS,

5035
03:11:46,280 --> 03:11:48,240
FINDING WAYS TO ADVOCATE ON

5036
03:11:48,240 --> 03:11:49,200
BEHALF OF MARGINALIZED GROUPS.

5037
03:11:49,200 --> 03:11:51,840
WE'RE GOING TO TALK ABOUT SOME

5038
03:11:51,840 --> 03:11:53,040
OF THOSE SOLUTIONS AND DISCUSS

5039
03:11:53,040 --> 03:11:57,160
NEXT STEPS AND FUTURE

5040
03:11:57,160 --> 03:11:59,280
DIRECTIONS.

5041
03:11:59,280 --> 03:12:00,920
NEXT SLIDE PLEASE.

5042
03:12:00,920 --> 03:12:02,560
MANY PEOPLE HAVE LIKELY SEEN

5043
03:12:02,560 --> 03:12:06,520
SOME VERSION OF THIS GRAPHIC.

5044
03:12:06,520 --> 03:12:09,560
TWO CENTER FIGURES CONTRAST THE

5045
03:12:09,560 --> 03:12:11,800
DIFFERENCE BETWEEN EQUALITY AND

5046
03:12:11,800 --> 03:12:12,440
EQUITY.

5047
03:12:12,440 --> 03:12:13,440
QUALITY BEING EVERYONE GETS

5048
03:12:13,440 --> 03:12:17,320
ACCESS TO THE SAME GOODS,

5049
03:12:17,320 --> 03:12:18,120
SERVICES, RESOURCES.

5050
03:12:18,120 --> 03:12:20,200
EQUITY BEING THAT PEOPLE GET

5051
03:12:20,200 --> 03:12:22,920
ACCESS TO WHAT THEY NEED WHICH

5052
03:12:22,920 --> 03:12:23,680
ACKNOWLEDGES NOT EVERYONE NEEDS

5053
03:12:23,680 --> 03:12:26,200
THE SAME THING.

5054
03:12:26,200 --> 03:12:28,080
SO EQUITY BRINGS IN THE CONCEPT

5055
03:12:28,080 --> 03:12:28,840
OF FAIRNESS.

5056
03:12:28,840 --> 03:12:31,440
THE IMAGE ON THE LEFT REMINDS US

5057
03:12:31,440 --> 03:12:35,720
THAT IN REALITY SOME PEOPLE

5058
03:12:35,720 --> 03:12:36,040
START OFF

5059
03:12:36,040 --> 03:12:37,560
[AUDIO DISTORTION]

5060
03:12:37,560 --> 03:12:39,000
WITH WAY LESS.

5061
03:12:39,000 --> 03:12:42,400
SO WE'RE NOT STARTING AT A PLACE

5062
03:12:42,400 --> 03:12:43,760
OF EQUALITY.

5063
03:12:43,760 --> 03:12:45,920
OPPORTUNITY GAPS ALREADY EXIST

5064
03:12:45,920 --> 03:12:48,240
IN SOCIETY, IN PARTICULAR ALONG

5065
03:12:48,240 --> 03:12:50,560
RACIAL AND ETHNIC LINES.

5066
03:12:50,560 --> 03:12:53,200
ON THE FAR RIGHT ASKS US TO

5067
03:12:53,200 --> 03:12:55,360
CONSIDER HOW WE FREE ALL GROUPS

5068
03:12:55,360 --> 03:12:59,400
FROM OPPRESSION AND

5069
03:12:59,400 --> 03:13:00,920
MARGINALIZATION, IMPLORES US TO

5070
03:13:00,920 --> 03:13:02,560
ASK THE QUESTION WHY DID SOMEONE

5071
03:13:02,560 --> 03:13:07,400
ERECT THE FENCE IN THE FIRST

5072
03:13:07,400 --> 03:13:08,520
PLACE?

5073
03:13:08,520 --> 03:13:12,000
NEXT SLIDE PLEASE.

5074
03:13:12,000 --> 03:13:15,160
SO, I START BY DEFINING SOME

5075
03:13:15,160 --> 03:13:15,360
TERMS.

5076
03:13:15,360 --> 03:13:21,200
I'M BORROWING FROM THE WORK OF

5077
03:13:21,200 --> 03:13:22,360
DR. KAMARA JONES, PICTURED ON

5078
03:13:22,360 --> 03:13:22,960
THE SCREEN.

5079
03:13:22,960 --> 03:13:24,240
THIS IS TO MAKE SURE WE'RE ALL

5080
03:13:24,240 --> 03:13:27,120
ON THE SAME PAGE HOW WE THINK

5081
03:13:27,120 --> 03:13:29,280
ABOUT SOME OF THESE TERMS.

5082
03:13:29,280 --> 03:13:31,480
IF WE THINK ABOUT

5083
03:13:31,480 --> 03:13:32,800
INSTITUTIONALIZED RACISM IT'S

5084
03:13:32,800 --> 03:13:35,960
DEFINED AS THE STRUCTURES,

5085
03:13:35,960 --> 03:13:38,160
POLICIES, PRACTICES, NORMS THAT

5086
03:13:38,160 --> 03:13:43,080
RESULT IN DIFFERENTIAL ACCESS TO

5087
03:13:43,080 --> 03:13:43,840
GOODS, ASKS SERVICES,

5088
03:13:43,840 --> 03:13:44,480
EXPERIENCES IN SOCIETY BECAUSE

5089
03:13:44,480 --> 03:13:45,520
OF RACE.

5090
03:13:45,520 --> 03:13:48,640
WE KNOW THAT INSTITUTIONAL

5091
03:13:48,640 --> 03:13:50,840
STRUCTURAL RACISM IS EMBEDDED IN

5092
03:13:50,840 --> 03:13:53,280
LARGER SOCIAL, POLITICAL,

5093
03:13:53,280 --> 03:13:54,720
ECONOMIC SYSTEMS THAT PEOPLE OF

5094
03:13:54,720 --> 03:13:57,640
COLOR HAVE TO NAVIGATE.

5095
03:13:57,640 --> 03:13:58,800
EXAMPLES OF INSTITUTIONALIZED

5096
03:13:58,800 --> 03:14:01,480
STRUCTURAL RACISM ON THE NEXT

5097
03:14:01,480 --> 03:14:03,840
FEW SLIDES.

5098
03:14:03,840 --> 03:14:05,640
CULTURAL RACISM IS IDEOLOGY

5099
03:14:05,640 --> 03:14:07,400
GROUNDED IN SUPERIORITY OF ONE

5100
03:14:07,400 --> 03:14:13,960
GROUP  ANOTHER, USUALLY

5101
03:14:13,960 --> 03:14:16,280
SUPERIORITY OF WHITE PEOPLE AND

5102
03:14:16,280 --> 03:14:18,240
INFERIORITY OF THOSE NON-WHITE.

5103
03:14:18,240 --> 03:14:21,400
AND IT'S OFTEN DEEPLY EMBEDDED

5104
03:14:21,400 --> 03:14:23,600
IN LANGUAGE, SYMBOLS, MEDIA, AND

5105
03:14:23,600 --> 03:14:24,400
JUST GENERAL ASSUMPTIONS ABOUT

5106
03:14:24,400 --> 03:14:32,280
PEOPLE OF COLOR WE MAKE IN

5107
03:14:32,280 --> 03:14:33,040
SOCIETY.

5108
03:14:33,040 --> 03:14:35,000
INTERRACISM IS A DISCRIMINATORY

5109
03:14:35,000 --> 03:14:35,760
EXPERIENCES THAT ETHNIC

5110
03:14:35,760 --> 03:14:43,960
MINORITIES  FACE EVERY DAY SUCH

5111
03:14:43,960 --> 03:14:45,960
AS MICROAGGRESSION, AND CAN

5112
03:14:45,960 --> 03:14:47,800
CONTRIBUTE TO INTERNAL RACE

5113
03:14:47,800 --> 03:14:48,440
INCH.

5114
03:14:48,440 --> 03:14:51,760
WE KNOW BLACK PEOPLE'S

5115
03:14:51,760 --> 03:14:54,680
ACCEPTANCE OF WHITE SUPERIORITY

5116
03:14:54,680 --> 03:14:56,000
IS ASSOCIATED WITH LOWER

5117
03:14:56,000 --> 03:14:59,880
SELF-ESTEEM AND HIGHER LEVELS OF

5118
03:14:59,880 --> 03:15:04,680
DEPRESSIVE SYMPTOMS AND OBESITY.

5119
03:15:04,680 --> 03:15:05,680
NEXT SLIDE PLEASE.

5120
03:15:05,680 --> 03:15:07,680
A GOOD FRIEND AT THE UNIVERSITY

5121
03:15:07,680 --> 03:15:09,280
OF NORTH CAROLINA, CHAPEL HILL,

5122
03:15:09,280 --> 03:15:11,600
A SOCIAL PSYCHOLOGIST, KEITH

5123
03:15:11,600 --> 03:15:15,720
PAYNE, PUBLISHED A PAPER IN

5124
03:15:15,720 --> 03:15:15,960
2019.

5125
03:15:15,960 --> 03:15:18,120
IN THAT PAPER HE WAS LOOKING AT

5126
03:15:18,120 --> 03:15:19,600
THE RELATIONSHIP BETWEEN THE

5127
03:15:19,600 --> 03:15:23,320
NUMBER OF SLAVES IN STATES IN

5128
03:15:23,320 --> 03:15:24,480
1860 AND STARTED WITH 1860, THE

5129
03:15:24,480 --> 03:15:26,840
FIRST YEAR THE U.S. CENSUS

5130
03:15:26,840 --> 03:15:30,120
STARTED TO DOCUMENT THE NUMBER

5131
03:15:30,120 --> 03:15:31,320
OF SLAVES IN SLAVE-HOLDING

5132
03:15:31,320 --> 03:15:31,800
STATES.

5133
03:15:31,800 --> 03:15:33,280
LOOKING AT THE ASSOCIATION

5134
03:15:33,280 --> 03:15:37,640
BETWEEN NUMBER OF SLAVES AND

5135
03:15:37,640 --> 03:15:42,880
PRESENT DAY LEVELS OF IMPLICIT

5136
03:15:42,880 --> 03:15:43,480
BIAS.

5137
03:15:43,480 --> 03:15:45,520
YOU CAN SEE DARKER COLORS MEAN

5138
03:15:45,520 --> 03:15:47,400
MORE SLAVES, THERE'S ALREADY

5139
03:15:47,400 --> 03:15:50,760
SOME OVERLAP WITH DARKER COLORS

5140
03:15:50,760 --> 03:15:52,320
ON THE MAP OF THE UNITED STATES

5141
03:15:52,320 --> 03:15:54,160
AT THE BOTTOM THERE, WHERE

5142
03:15:54,160 --> 03:15:57,160
DARKER COLORS MEAN HIGHER LEVELS

5143
03:15:57,160 --> 03:15:58,800
OF IMPLICIT RACIAL BIASES IN

5144
03:15:58,800 --> 03:16:02,280
THOSE SAME STATES.

5145
03:16:02,280 --> 03:16:04,680
NEXT SLIDE PLEASE.

5146
03:16:04,680 --> 03:16:07,560
WHAT KEITH FOUND WAS A

5147
03:16:07,560 --> 03:16:08,960
RELATIONSHIP BETWEEN NUMBER OF

5148
03:16:08,960 --> 03:16:11,040
SLAVES IN 1860 AND PRESENT DAY

5149
03:16:11,040 --> 03:16:13,440
LEVELS OF IMPLICIT RACIAL BIAS.

5150
03:16:13,440 --> 03:16:17,600
WHAT HE ALSO FOUND, AND HIS

5151
03:16:17,600 --> 03:16:18,680
GROUP, THAT ASSOCIATION WAS

5152
03:16:18,680 --> 03:16:20,760
MEDIATED BY WHAT WE THINK OF AS

5153
03:16:20,760 --> 03:16:23,480
FORMS OF SYSTEM IS RACISM.

5154
03:16:23,480 --> 03:16:26,160
SO, THOSE STATES ALSO TENDED TO

5155
03:16:26,160 --> 03:16:29,440
HAVE HIGHER LEVELS OF

5156
03:16:29,440 --> 03:16:30,840
RESIDENTIAL SEGREGATION, MORE

5157
03:16:30,840 --> 03:16:31,640
DISPARITY IN POVERTY,

5158
03:16:31,640 --> 03:16:34,000
PARTICULARLY IN NUMBER OF BLACK

5159
03:16:34,000 --> 03:16:35,600
PEOPLE IN CONCENTRATED POVERTY,

5160
03:16:35,600 --> 03:16:37,080
MORE DISPARITY IN UPWARD

5161
03:16:37,080 --> 03:16:38,640
MOBILITY, ABILITY OF PEOPLE IN

5162
03:16:38,640 --> 03:16:40,840
POVERTY TO CLIMB OUT OF POVERTY.

5163
03:16:40,840 --> 03:16:43,160
SO WE CAN THINK ABOUT THOSE

5164
03:16:43,160 --> 03:16:47,280
THINGS AS REMNANTS OFTEN OF

5165
03:16:47,280 --> 03:16:50,080
SLAVERY, SUBSEQUENT JIM CROW

5166
03:16:50,080 --> 03:16:51,720
LAWS LIKE RED LINING AFFECTING

5167
03:16:51,720 --> 03:16:54,280
ABILITY OF PEOPLE TO GET BANK

5168
03:16:54,280 --> 03:16:57,280
LOANS, TO BUY HOMES.

5169
03:16:57,280 --> 03:17:00,960
ALL OF THOSE PRODUCTS OF SYSTEM

5170
03:17:00,960 --> 03:17:02,800
IS RACISM CONTRIBUTE TO MODERN

5171
03:17:02,800 --> 03:17:04,680
DAY LEVELS OF IMPLICIT RACIAL

5172
03:17:04,680 --> 03:17:04,920
BIAS.

5173
03:17:04,920 --> 03:17:10,200
WE CAN SEE HOW -- THE HISTORY,

5174
03:17:10,200 --> 03:17:11,240
SOCIOHISTORICAL CONTEXT IS

5175
03:17:11,240 --> 03:17:14,520
CONTRIBUTING TO CURRENT FORMS OF

5176
03:17:14,520 --> 03:17:15,360
DISCRIMINATION, AND IMPLICIT

5177
03:17:15,360 --> 03:17:16,800
RACIAL BIASES OPERATING IN

5178
03:17:16,800 --> 03:17:19,320
TODAY'S SOCIETY.

5179
03:17:19,320 --> 03:17:20,240
NEXT SLIDE PLEASE.

5180
03:17:20,240 --> 03:17:21,680
THIS IS ONE EXAMPLE.

5181
03:17:21,680 --> 03:17:23,840
IT'S A LOT ON THIS SCREEN.

5182
03:17:23,840 --> 03:17:25,720
BUT THAT WAS PUBLISHED AROUND

5183
03:17:25,720 --> 03:17:27,360
HOW STRUCTURAL RACISM COULD BE

5184
03:17:27,360 --> 03:17:28,520
OPERATING IN PEDIATRIC HEALTH

5185
03:17:28,520 --> 03:17:28,880
CARE.

5186
03:17:28,880 --> 03:17:30,080
I WON'T WALK YOU THROUGH THE

5187
03:17:30,080 --> 03:17:32,360
WHOLE THING BUT YOU CAN SEE THEY

5188
03:17:32,360 --> 03:17:36,280
DOCUMENT SOME FORMS OF

5189
03:17:36,280 --> 03:17:38,720
STRUCTURAL RACISM, SUCH AS

5190
03:17:38,720 --> 03:17:40,680
RESIDENTIAL SEGREGATION OR

5191
03:17:40,680 --> 03:17:41,880
SCHOOL SEGREGATION AND HOW THAT

5192
03:17:41,880 --> 03:17:43,080
CAN CONTRIBUTE OR AFFECT

5193
03:17:43,080 --> 03:17:45,840
ENVIRONMENTS IN WHICH PEOPLE

5194
03:17:45,840 --> 03:17:52,360
LIVE. 

5195
03:17:52,360 --> 03:17:53,680
SAFETY OF NEIGHBORHOODS,

5196
03:17:53,680 --> 03:17:55,680
EDUCATIONAL ACCESS, THOSE THINGS

5197
03:17:55,680 --> 03:17:58,120
LEAD TO -- CONTRIBUTE TO

5198
03:17:58,120 --> 03:17:59,640
INTERPERSONAL RACISM, IMPLICIT

5199
03:17:59,640 --> 03:18:01,920
AS WELL AS EXPLICIT, AND ALL OF

5200
03:18:01,920 --> 03:18:04,240
THESE THINGS REALLY THEN BEGIN

5201
03:18:04,240 --> 03:18:08,160
TO IMPACT OUTCOMES. 

5202
03:18:08,160 --> 03:18:08,720
THE QUALITY OF RELATIONSHIPS

5203
03:18:08,720 --> 03:18:10,920
THAT ARE HAPPENING AND ONE MAY

5204
03:18:10,920 --> 03:18:12,120
HAVE WITH HEALTH CARE PROVIDER,

5205
03:18:12,120 --> 03:18:13,920
OR WITH TEACHER IN SCHOOLS.

5206
03:18:13,920 --> 03:18:15,040
AND THAT THESE FURTHER

5207
03:18:15,040 --> 03:18:16,480
CONTRIBUTE TO ALL KINDS OF

5208
03:18:16,480 --> 03:18:18,000
DISPARITIES THAT WE SEE ON THE

5209
03:18:18,000 --> 03:18:22,040
RIGHT, IN TERMS OF OUTCOMES FOR

5210
03:18:22,040 --> 03:18:23,400
PEOPLE.

5211
03:18:23,400 --> 03:18:24,240
AND THERE'S OFTEN

5212
03:18:24,240 --> 03:18:25,560
INTERGENERATIONAL TRANSMISSION

5213
03:18:25,560 --> 03:18:26,440
OF THESE ISSUES, AS I SAID,

5214
03:18:26,440 --> 03:18:28,280
ABILITY OF PEOPLE TO CLIMB OUT

5215
03:18:28,280 --> 03:18:31,240
OF POVERTY IS THEN IMPACTED BY

5216
03:18:31,240 --> 03:18:32,560
SOME STRUCTURAL REMNANTS OF

5217
03:18:32,560 --> 03:18:37,800
RACISM OPERATING IN OUR SOCIETY.

5218
03:18:37,800 --> 03:18:39,000
NEXT SLIDE PLEASE.

5219
03:18:39,000 --> 03:18:42,560
SO AS A BASIC EXAMPLE, THIS IS

5220
03:18:42,560 --> 03:18:44,160
ACTUALLY PRE-PANDEMIC DATA.

5221
03:18:44,160 --> 03:18:46,600
WE KNOW THE PANDEMIC EXACERBATED

5222
03:18:46,600 --> 03:18:48,680
THE DISPARITIES IN MANY WAYS.

5223
03:18:48,680 --> 03:18:50,400
ONE OF THE THINGS WE KNOW WITHIN

5224
03:18:50,400 --> 03:18:54,680
THE U.S. SOCIETY IS THAT THERE

5225
03:18:54,680 --> 03:18:56,440
IS INTERACTION BETWEEN RACE AND

5226
03:18:56,440 --> 03:18:57,000
COST.

5227
03:18:57,000 --> 03:19:01,480
PEOPLE OF COLOR WHO ARE BLACK,

5228
03:19:01,480 --> 03:19:02,760
LATIN A OR INDIGENOUS MORE

5229
03:19:02,760 --> 03:19:04,880
LIKELY TO LIVE IN LOWER INCOME

5230
03:19:04,880 --> 03:19:05,320
HOUSEHOLDS.

5231
03:19:05,320 --> 03:19:09,600
ONE WAY WE TALK ABOUT THIS, IT'S

5232
03:19:09,600 --> 03:19:10,560
CONCENTRATED OR COMPOUNDED

5233
03:19:10,560 --> 03:19:14,160
DISADVANTAGE, IF YOU ARE A POOR

5234
03:19:14,160 --> 03:19:16,040
RACIAL/ETHNIC MINORITY YOU ALSO

5235
03:19:16,040 --> 03:19:20,200
ARE MORE LIKELY TO LIVE IN

5236
03:19:20,200 --> 03:19:21,840
SEGREGATED HOUSING, MORE LIKELY

5237
03:19:21,840 --> 03:19:24,360
TO ATTEND MORE QUALITY SCHOOLS

5238
03:19:24,360 --> 03:19:26,840
BECAUSE OF HOW SCHOOLS ARE

5239
03:19:26,840 --> 03:19:29,160
FUNDED WITHIN U.S. SOCIETY,

5240
03:19:29,160 --> 03:19:36,720
OFTEN BASED IN LARGE PART BASED

5241
03:19:36,720 --> 03:19:39,680
ON TAXPAYER, PROPERTY TAXPAYERS,

5242
03:19:39,680 --> 03:19:41,200
COMPOUNDING DISADVANTAGE,

5243
03:19:41,200 --> 03:19:42,600
AFFECTING RESOURCES AVAILABLE TO

5244
03:19:42,600 --> 03:19:43,400
THAT PARTICULAR NEIGHBORHOOD.

5245
03:19:43,400 --> 03:19:45,360
SO, WE OFTEN THINK ABOUT THESE

5246
03:19:45,360 --> 03:19:47,760
THINGS AS CONCENTRATED OR

5247
03:19:47,760 --> 03:19:49,200
COMPOUNDED DISADVANTAGE THAT

5248
03:19:49,200 --> 03:19:51,280
GROUPS ARE FACING, THAT REALLY,

5249
03:19:51,280 --> 03:19:54,800
AGAIN, ARE THE REMNANTS OF A

5250
03:19:54,800 --> 03:19:57,080
RACIALIZED SOCIETY WE'RE LIVING

5251
03:19:57,080 --> 03:19:57,280
IN.

5252
03:19:57,280 --> 03:19:59,040
NEXT SLIDE PLEASE.

5253
03:19:59,040 --> 03:20:05,480
SO THE QUESTION WE BEGIN TO ASK,

5254
03:20:05,480 --> 03:20:06,280
HOW DOES RACISM AND

5255
03:20:06,280 --> 03:20:09,000
DISCRIMINATION IMPACT AUTISTIC

5256
03:20:09,000 --> 03:20:13,520
PEOPLE OF COLOR?

5257
03:20:13,520 --> 03:20:18,320
NEXT SLIDE PLEASE.

5258
03:20:18,320 --> 03:20:19,960
EARLIER DISCUSSION WAS

5259
03:20:19,960 --> 03:20:23,640
PREVALENCE DATA, THAT WE'RE

5260
03:20:23,640 --> 03:20:26,080
SEEING, PREVALENCE LOWER AMONG

5261
03:20:26,080 --> 03:20:27,040
WHITE CHILDREN THAN OTHER

5262
03:20:27,040 --> 03:20:27,280
GROUPS.

5263
03:20:27,280 --> 03:20:31,640
SO IT'S A GOOD THING WE'RE

5264
03:20:31,640 --> 03:20:32,960
BEGINNING TO IDENTIFY MORE

5265
03:20:32,960 --> 03:20:35,880
RACIAL AND ETHNIC MINORITY

5266
03:20:35,880 --> 03:20:38,240
CHILDREN BUT WHAT ASKING MORE

5267
03:20:38,240 --> 03:20:41,600
QUESTIONS TO HELP US BETTER

5268
03:20:41,600 --> 03:20:43,800
UNDERSTAND THE EXPERIENCES OF

5269
03:20:43,800 --> 03:20:53,000
RACIAL AND ETHNIC AUTISTIC

5270
03:20:53,000 --> 03:20:53,760
FAMILIES, ASKING QUESTIONS HOW

5271
03:20:53,760 --> 03:20:55,760
THEY ARE IMPACTING COMMUNITIES

5272
03:20:55,760 --> 03:20:56,520
AND OUTCOMES.

5273
03:20:56,520 --> 03:20:59,360
WE SHOULDN'T STOP WITH

5274
03:20:59,360 --> 03:20:59,720
IDENTIFICATION.

5275
03:20:59,720 --> 03:21:01,640
NEXT TO UNDERSTAND WHAT THEIR

5276
03:21:01,640 --> 03:21:03,280
LIVES ARE LIKE TO REALLY BEGIN

5277
03:21:03,280 --> 03:21:05,880
TO THINK ABOUT THESE QUESTIONS.

5278
03:21:05,880 --> 03:21:08,760
AND WE ALSO STILL SEE IN THE CDC

5279
03:21:08,760 --> 03:21:10,840
DATA THAT RACIAL AND ETHNIC

5280
03:21:10,840 --> 03:21:12,480
DISPARITIES EXIST SUCH AS BLACK

5281
03:21:12,480 --> 03:21:13,680
CHILDREN WITH ASD MORE LIKELY

5282
03:21:13,680 --> 03:21:18,520
THAN WHITE CHILDREN TO HAVE A

5283
03:21:18,520 --> 03:21:19,120
CO-OCCURRING INTELLECTUAL

5284
03:21:19,120 --> 03:21:21,320
DISABILITY PULLED FROM THE CDC

5285
03:21:21,320 --> 03:21:21,520
WEBSITE.

5286
03:21:21,520 --> 03:21:23,200
THE NEW NUMBERS SHOULD REALLY

5287
03:21:23,200 --> 03:21:25,840
PUSH US FORWARD WITH ASKING SOME

5288
03:21:25,840 --> 03:21:27,360
IMPORTANT QUESTIONS. 

5289
03:21:27,360 --> 03:21:29,320
NEXT SLIDE PLEASE. 

5290
03:21:29,320 --> 03:21:31,400
SO THIS IS JUST A BRIEF VIDEO

5291
03:21:31,400 --> 03:21:36,000
I'VE SHOWN BEFORE BUT IT'S A

5292
03:21:36,000 --> 03:21:38,840
BLACK MOTHER OF AUTISTIC SON

5293
03:21:38,840 --> 03:21:40,480
TALKING ABOUT HER EXPERIENCE WHY

5294
03:21:40,480 --> 03:21:43,040
WE SHOULD ASK SOME QUESTIONS

5295
03:21:43,040 --> 03:21:43,440
AROUND RACISM AND

5296
03:21:43,440 --> 03:21:44,000
DISCRIMINATION.

5297
03:21:44,000 --> 03:21:47,760
IF YOU COULD PLAY THE VIDEO.

5298
03:21:47,760 --> 03:21:49,120
>>I COULD START WHAT IT
MEANS

5299
03:21:49,120 --> 03:21:54,520
TO BE A BLACK MOTHER, PERIOD.

5300
03:21:54,520 --> 03:21:56,920
SO, FOR US AS PARENTS, THERE IS

5301
03:21:56,920 --> 03:21:59,880
ALWAYS AN ANXIETY, I LIKE TO SAY

5302
03:21:59,880 --> 03:22:01,960
THAT THE FEELINGS, MEMORY,

5303
03:22:01,960 --> 03:22:04,920
SPIRIT OF HISTORICAL TRAUMA AND

5304
03:22:04,920 --> 03:22:08,560
STORY OF EMMITT TILL LIES WITHIN

5305
03:22:08,560 --> 03:22:10,840
OUR WOMB, OUR SOUL IN THE BLACK

5306
03:22:10,840 --> 03:22:13,120
COMMUNITY, FEAR OF A BLACK

5307
03:22:13,120 --> 03:22:13,360
MOTHER.

5308
03:22:13,360 --> 03:22:15,160
I MEAN, I ALWAYS SAY BLACK FOLKS

5309
03:22:15,160 --> 03:22:18,600
ARE NOT ALLOWED TO BE

5310
03:22:18,600 --> 03:22:19,160
UNAPOLOGETICALLY THEMSELVES.

5311
03:22:19,160 --> 03:22:21,440
THEY ARE NOT PERMITTED TO BE

5312
03:22:21,440 --> 03:22:21,920
NEURODIVERSE.

5313
03:22:21,920 --> 03:22:24,920
AND WE KNOW THIS ON A LOT OF

5314
03:22:24,920 --> 03:22:25,320
LEVELS.

5315
03:22:25,320 --> 03:22:28,560
MY BIGGEST FEAR IS IF AN OFFICER

5316
03:22:28,560 --> 03:22:31,840
APPROACHES MY CHILD, AND MY

5317
03:22:31,840 --> 03:22:33,480
CHILD BEGINS TO STEM, HAVE TO

5318
03:22:33,480 --> 03:22:35,960
PUT HIS HANDS IN HIS POCKETS TO

5319
03:22:35,960 --> 03:22:38,120
TAKE OUT ONE OF THE THINGS HE

5320
03:22:38,120 --> 03:22:40,080
LIKES TO HOLD ON TO TO HELP WITH

5321
03:22:40,080 --> 03:22:42,240
ANXIETY, ONE OF HIS TRINKETS OR

5322
03:22:42,240 --> 03:22:44,000
THINGS HE HOLDS ONTO AND REACHES

5323
03:22:44,000 --> 03:22:46,320
INTO THAT POCKET TO PULL IT OUT,

5324
03:22:46,320 --> 03:22:48,960
TO CALM HIMSELF, WHAT'S GOING TO

5325
03:22:48,960 --> 03:22:50,880
HAPPEN TO MY SON?

5326
03:22:50,880 --> 03:22:53,280
>>I THINK THOSE ARE THE
KINDS

5327
03:22:53,280 --> 03:22:55,720
OF QUESTIONS WE NEED TO BE

5328
03:22:55,720 --> 03:22:56,600
ASKING AND ANSWERING.

5329
03:22:56,600 --> 03:22:59,040
WHAT'S GOING TO HAPPEN TO HER

5330
03:22:59,040 --> 03:23:00,440
SON IN THAT SITUATION?

5331
03:23:00,440 --> 03:23:05,920
BECAUSE HE IS A BLACK AUTISTIC

5332
03:23:05,920 --> 03:23:10,320
MAN.

5333
03:23:10,320 --> 03:23:10,960
NEXT SLIDE PLEASE.

5334
03:23:10,960 --> 03:23:13,800
>>TODAY I GET THE
OPPORTUNITY

5335
03:23:13,800 --> 03:23:17,080
TO TALK ABOUT THE RACIAL AND

5336
03:23:17,080 --> 03:23:20,240
ETHNIC DISPARITIES THAT ARE

5337
03:23:20,240 --> 03:23:22,240
APPARENT IN AUTISM RESEARCH.

5338
03:23:22,240 --> 03:23:23,840
THERE'S GOING TO BE SOME

5339
03:23:23,840 --> 03:23:24,840
ANIMATION.

5340
03:23:24,840 --> 03:23:25,720
WE'LL PRESENT SEVERAL EXAMPLES

5341
03:23:25,720 --> 03:23:29,680
TODAY THAT TOUCH ON DIFFERENT

5342
03:23:29,680 --> 03:23:30,680
DOMAINS ACROSS THE LIFESPAN, BUT

5343
03:23:30,680 --> 03:23:33,160
THIS IS NOT AN EXHAUSTIVE LIST

5344
03:23:33,160 --> 03:23:34,080
BY ANY MEANS.

5345
03:23:34,080 --> 03:23:36,800
I WANT TO START WITH THE

5346
03:23:36,800 --> 03:23:38,520
DOCUMENTED DISPARITIES AND

5347
03:23:38,520 --> 03:23:38,960
DIAGNOSIS.

5348
03:23:38,960 --> 03:23:41,160
I THANK WENDY STONE FOR SHARING

5349
03:23:41,160 --> 03:23:41,960
THIS SLIDE.

5350
03:23:41,960 --> 03:23:44,160
WHAT SHE EXPLAINED IN HER

5351
03:23:44,160 --> 03:23:46,680
DIAGNOSTIC WORK IS THAT PARENTS

5352
03:23:46,680 --> 03:23:48,320
TYPICALLY EXPRESS CONCERNS IN

5353
03:23:48,320 --> 03:23:50,280
DEVELOPMENT ABOUT THEIR CHILDREN

5354
03:23:50,280 --> 03:23:53,160
AROUND 18 MONTHS, PERHAPS THIS

5355
03:23:53,160 --> 03:23:55,040
IS WHEN CHILD IS NOT

5356
03:23:55,040 --> 03:23:56,640
CONSISTENTLY RESPONDING TO NAME

5357
03:23:56,640 --> 03:23:58,200
OR INFREQUENTLY MAKING EYE

5358
03:23:58,200 --> 03:24:00,160
CONTACT WHICH HAS CULTURAL

5359
03:24:00,160 --> 03:24:00,880
UNDERTONES, OR ISN'T

5360
03:24:00,880 --> 03:24:03,080
COMMUNICATING IN THE WAY PARENTS

5361
03:24:03,080 --> 03:24:03,840
EXPECT.

5362
03:24:03,840 --> 03:24:05,160
SO THEY BEGIN TO SUSPECT THAT

5363
03:24:05,160 --> 03:24:06,840
SOMETHING MAY BE DIFFERENT ABOUT

5364
03:24:06,840 --> 03:24:08,680
THEIR CHILD'S DEVELOPMENT AND GO

5365
03:24:08,680 --> 03:24:11,600
TO THE PEDIATRICIAN'S OFFICE,

5366
03:24:11,600 --> 03:24:13,240
THE PEDIATRICIAN TELLS THE

5367
03:24:13,240 --> 03:24:15,560
PARENTS TO LET'S WAIT AND SEE

5368
03:24:15,560 --> 03:24:16,440
WHAT HAPPENS.

5369
03:24:16,440 --> 03:24:18,080
AVERAGE MOST CHILDREN DON'T

5370
03:24:18,080 --> 03:24:19,600
RECEIVE AUTISM DIAGNOSIS UNTIL

5371
03:24:19,600 --> 03:24:23,200
ABOUT AGES 3 OR 4, AND SOME

5372
03:24:23,200 --> 03:24:24,560
RECENT RESEARCH SUGGESTS CLOSER

5373
03:24:24,560 --> 03:24:27,160
TO AGE 4.

5374
03:24:27,160 --> 03:24:31,280
HOWEVER, ON AVERAGE, CHILDREN

5375
03:24:31,280 --> 03:24:38,080
FROM  RACIAL/ETHNIC BACKGROUNDS

5376
03:24:38,080 --> 03:24:39,640
RECEIVE AT 5 OR 6, SOMETIMES

5377
03:24:39,640 --> 03:24:42,040
CLOSER TO 8.

5378
03:24:42,040 --> 03:24:44,560
THERE'S A GAP OF AUTISM

5379
03:24:44,560 --> 03:24:45,960
DIAGNOSIS FOR EVERYONE, THAT GAP

5380
03:24:45,960 --> 03:24:47,960
IS WIDER FROM CHILDREN FROM

5381
03:24:47,960 --> 03:24:49,280
RACIAL AND ETHNIC MINORITY

5382
03:24:49,280 --> 03:24:49,600
BACKGROUND.

5383
03:24:49,600 --> 03:24:53,240
WE KNOW THERE'S A LONG WAITING

5384
03:24:53,240 --> 03:24:53,760
PERIOD FOR DIAGNOSIS,

5385
03:24:53,760 --> 03:24:54,400
DIAGNOSTICS ACROSS THE BOARD BUT

5386
03:24:54,400 --> 03:24:56,920
IF YOU THINK ABOUT IT, ON

5387
03:24:56,920 --> 03:24:58,680
AVERAGE, A CHILD HAS TO WAIT

5388
03:24:58,680 --> 03:25:01,640
MOST OF THEIR LIFE TO GET AN

5389
03:25:01,640 --> 03:25:03,400
AUTISM CLASSIFICATION OR

5390
03:25:03,400 --> 03:25:03,640
DIAGNOSIS.

5391
03:25:03,640 --> 03:25:04,680
THAT'S REALLY UNACCEPTABLE IF

5392
03:25:04,680 --> 03:25:06,280
YOU THINK ABOUT WHAT SURFACES

5393
03:25:06,280 --> 03:25:08,880
GET LAYERED ON TOP OF THAT --

5394
03:25:08,880 --> 03:25:11,480
SERVICES GET LAYERED ON TOP OF

5395
03:25:11,480 --> 03:25:11,920
THAT.

5396
03:25:11,920 --> 03:25:14,120
EARLY INTERVENTION SERVICES

5397
03:25:14,120 --> 03:25:15,840
OFFERED FROM 0 TO 3, SOME STATES

5398
03:25:15,840 --> 03:25:18,160
UP TO 5, A CRITICALLY IMPORTANT

5399
03:25:18,160 --> 03:25:20,560
TIME FOR BRAIN PLASTICITY AND

5400
03:25:20,560 --> 03:25:20,800
GROWTH.

5401
03:25:20,800 --> 03:25:22,000
CHILDREN GETTING THAT DIAGNOSIS

5402
03:25:22,000 --> 03:25:23,960
LATER, THEY ARE MISSING THAT

5403
03:25:23,960 --> 03:25:26,000
WINDOW FOR EARLY INTERVENTION

5404
03:25:26,000 --> 03:25:28,040
SERVICES, AND THAT'S A CRITICAL

5405
03:25:28,040 --> 03:25:33,520
PERIOD WE KNOW CAN HELP IMPROVE

5406
03:25:33,520 --> 03:25:33,960
OUTCOMES.

5407
03:25:33,960 --> 03:25:34,640
NEXT SLIDE.

5408
03:25:34,640 --> 03:25:37,360
SO ONCE CHILDREN GET AN AUTISM

5409
03:25:37,360 --> 03:25:39,120
DIAGNOSIS AND ENTER SCHOOL, WE

5410
03:25:39,120 --> 03:25:41,080
SEE SOME RACIAL AND ETHNIC

5411
03:25:41,080 --> 03:25:42,080
DISPARITIES IN THE SCHOOL SYSTEM

5412
03:25:42,080 --> 03:25:44,160
IN TERMS OF CLASSROOM PLACEMENT.

5413
03:25:44,160 --> 03:25:46,240
WHAT THIS SLIDE IS SHOWING US,

5414
03:25:46,240 --> 03:25:49,720
BLACK STUDENTS REGARDLESS OF

5415
03:25:49,720 --> 03:25:51,400
DIAGNOSIS ARE AT HIGHER RISK

5416
03:25:51,400 --> 03:25:52,760
BEING PLACED IN SELF-CONTAINED

5417
03:25:52,760 --> 03:25:55,440
SETTING OR SPECIAL DAY CLASS,

5418
03:25:55,440 --> 03:25:57,160
AND MORE SPECIFICALLY BLACK

5419
03:25:57,160 --> 03:25:58,320
AUTISTIC STUDENTS HAVE HIGHER

5420
03:25:58,320 --> 03:26:00,680
RISK OF BEING PLACED IN

5421
03:26:00,680 --> 03:26:02,000
SELF-CONTAINED SETTING OR

5422
03:26:02,000 --> 03:26:04,120
SPECIAL DAY CLASS, REGARDLESS OF

5423
03:26:04,120 --> 03:26:06,280
THEIR FREE AND REDUCED PRICE

5424
03:26:06,280 --> 03:26:08,800
LUNCH STATUS, ON TOP, ADDING ON

5425
03:26:08,800 --> 03:26:10,760
NOTICING THAT THERE ARE SOME

5426
03:26:10,760 --> 03:26:12,960
DISPARITIES IN WHERE STUDENTS

5427
03:26:12,960 --> 03:26:15,880
ARE ACCESSING THEIR EDUCATION.

5428
03:26:15,880 --> 03:26:16,480
NEXT SLIDE.

5429
03:26:16,480 --> 03:26:18,080
AND WHEN YOU THINK FURTHER ABOUT

5430
03:26:18,080 --> 03:26:19,640
SOME OF THE SOCIAL RELATIONSHIPS

5431
03:26:19,640 --> 03:26:21,280
THAT EXIST IN SCHOOL SETTINGS WE

5432
03:26:21,280 --> 03:26:23,800
ALSO SEE SOME OF THOSE RACIAL

5433
03:26:23,800 --> 03:26:25,120
AND ETHNIC DISPARITIES.

5434
03:26:25,120 --> 03:26:27,840
SO IN THE LOWER ELEMENTARY

5435
03:26:27,840 --> 03:26:30,000
SCHOOL GRADES, K-2, WE SEE

5436
03:26:30,000 --> 03:26:31,000
NEUROTYPICAL BLACK CHILDREN

5437
03:26:31,000 --> 03:26:33,200
RECEIVE THE HIGHEST NUMBER OF

5438
03:26:33,200 --> 03:26:35,160
FRIENDSHIP NOMINATIONS.

5439
03:26:35,160 --> 03:26:38,640
HOLLY, CLICK THE OTHER

5440
03:26:38,640 --> 03:26:38,960
ANIMATIONS.

5441
03:26:38,960 --> 03:26:40,080
THANK YOU.

5442
03:26:40,080 --> 03:26:45,560
AND SO WE SEE THAT BLACK KIDS

5443
03:26:45,560 --> 03:26:49,080
WITH HIGHER NUMBER OF FRIENDSHIP

5444
03:26:49,080 --> 03:26:51,040
NOMINATIONS BUT THAT NUMBER GOES

5445
03:26:51,040 --> 03:26:53,320
DOWN IN BLACK AUTISTIC CHILDREN

5446
03:26:53,320 --> 03:26:57,640
IN UPPER ELEMENTARY GRADES,

5447
03:26:57,640 --> 03:26:58,280
DECLINES DRAMATICALLY, EVEN

5448
03:26:58,280 --> 03:26:59,800
THOUGH THAT'S THE GROUP WITH THE

5449
03:26:59,800 --> 03:27:01,560
MOST NOMINATION IN YOUNGER

5450
03:27:01,560 --> 03:27:01,760
GRADE.

5451
03:27:01,760 --> 03:27:07,360
IF YOU CLICK ONE MORE TIME.

5452
03:27:07,360 --> 03:27:11,120
OF INTEREST WE SEE NEUROTYPICAL

5453
03:27:11,120 --> 03:27:13,080
LATIN CHILDREN THE ONLY GROUP

5454
03:27:13,080 --> 03:27:14,400
FRIENDSHIP NOMINATIONS INCREASE

5455
03:27:14,400 --> 03:27:18,680
FROM LOWER TO UPPER ELEMENTARY

5456
03:27:18,680 --> 03:27:20,400
SCHOOL GRADES, BUT EXPERIENCE

5457
03:27:20,400 --> 03:27:22,040
GREATEST DECLINE IN NUMBER OF

5458
03:27:22,040 --> 03:27:23,120
FRIENDSHIP NOMINATIONS FROM

5459
03:27:23,120 --> 03:27:24,680
YOUNGER TO OLDER GRADES.

5460
03:27:24,680 --> 03:27:26,920
THESE ARE ALL PEER NOMINATIONS

5461
03:27:26,920 --> 03:27:28,520
THAT DO NOT COME FROM RESEARCH

5462
03:27:28,520 --> 03:27:32,200
TEAM, CAME FROM THE CHILDREN

5463
03:27:32,200 --> 03:27:32,520
THEMSELVES.

5464
03:27:32,520 --> 03:27:33,760
BOTTOM GRAPH SHOWS ALL AUTISTIC

5465
03:27:33,760 --> 03:27:35,960
CHILDREN WITH EXCEPTION OF ASIAN

5466
03:27:35,960 --> 03:27:38,880
AUTISTIC CHILDREN IN GRADES K-2

5467
03:27:38,880 --> 03:27:40,320
WERE LESS INTEGRATED IN

5468
03:27:40,320 --> 03:27:41,960
CLASSROOM SOCIAL NETWORK THAN

5469
03:27:41,960 --> 03:27:44,120
NEUROTYPICAL WHITE CHILDREN IN

5470
03:27:44,120 --> 03:27:46,080
GRADES K-2, WE'RE SEEING

5471
03:27:46,080 --> 03:27:47,520
DISPARITIES IN SOCIAL

5472
03:27:47,520 --> 03:27:52,880
RELATIONSHIPS AS WELL.

5473
03:27:52,880 --> 03:27:54,760
NEXT SLIDE.

5474
03:27:54,760 --> 03:27:55,840
THESE ARE DEMOGRAPHIC DATA

5475
03:27:55,840 --> 03:27:59,240
ACROSS 20 YEARS OF SCHOOL-BASED

5476
03:27:59,240 --> 03:28:03,280
RESEARCH WITH OVER 400 AUTISTIC

5477
03:28:03,280 --> 03:28:09,640
YOUTH, 349 TEACHERS,  266 PARA

5478
03:28:09,640 --> 03:28:11,360
EDUCATORS, FOUR STATES.

5479
03:28:11,360 --> 03:28:12,560
WE LAN PRELIMINARY ANALYSIS TO

5480
03:28:12,560 --> 03:28:14,240
UNDERSTAND WHO PARTICIPATE IN

5481
03:28:14,240 --> 03:28:16,000
SCHOOL-BASED RESEARCH.

5482
03:28:16,000 --> 03:28:17,080
THAT SAMPLE IS PREDOMINANTLY

5483
03:28:17,080 --> 03:28:17,440
WHITE.

5484
03:28:17,440 --> 03:28:19,640
IF YOU THINK BIT SCHOOL-BASED

5485
03:28:19,640 --> 03:28:21,240
RESEARCH IS INTENDED TO REACH

5486
03:28:21,240 --> 03:28:23,840
MORE AUTISTIC YOUTH IN THEIR

5487
03:28:23,840 --> 03:28:25,280
NATURAL SERVICE SETTINGS, AND

5488
03:28:25,280 --> 03:28:27,880
NUMBERS LOOK SLIGHTLY BETTER

5489
03:28:27,880 --> 03:28:28,680
THAN UNIVERSITY-BASED OR CLINIC

5490
03:28:28,680 --> 03:28:31,520
SETTINGS BUT WE SEE MORE WHITE

5491
03:28:31,520 --> 03:28:33,160
AUTISTIC YOUTH IN ACCESSING

5492
03:28:33,160 --> 03:28:34,360
RESEARCH BASED SERVICES IN

5493
03:28:34,360 --> 03:28:34,960
SCHOOLS.

5494
03:28:34,960 --> 03:28:37,000
WHAT'S EVEN MORE STRIKING IS THE

5495
03:28:37,000 --> 03:28:40,560
PERCENTAGE OF WHITE TEACHERS,

5496
03:28:40,560 --> 03:28:43,160
FAR OUTNUMBERS ALL OTHER RACIAL

5497
03:28:43,160 --> 03:28:47,560
AND ETHNIC  CATEGORIES.

5498
03:28:47,560 --> 03:28:49,800
WE'RE ASKING TEACHERS TO BE

5499
03:28:49,800 --> 03:28:51,480
SUPPORT PROVIDERS AND THERE'S A

5500
03:28:51,480 --> 03:28:53,240
GREATER LIKELY HOOD OF

5501
03:28:53,240 --> 03:28:54,440
INTERVENTION SUCCESS AND

5502
03:28:54,440 --> 03:28:55,640
OUTCOMES WHEN THERE'S

5503
03:28:55,640 --> 03:28:56,960
CONCORDANCE BETWEEN THE

5504
03:28:56,960 --> 03:28:58,240
PROVIDERS AND THEIR CLIENTS.

5505
03:28:58,240 --> 03:29:00,080
SO TO SAY THAT DIFFERENTLY,

5506
03:29:00,080 --> 03:29:01,960
THERE MAY BE GREATER SUCCESS IF

5507
03:29:01,960 --> 03:29:03,560
THE RACE AND ETHNICITY OF

5508
03:29:03,560 --> 03:29:04,720
TEACHER MATCHES THAT OF THE

5509
03:29:04,720 --> 03:29:08,320
AUTISTIC CHILD BUT WE'RE SEEING

5510
03:29:08,320 --> 03:29:11,280
A PREDOMINANTLY OVERWHELMINGLY

5511
03:29:11,280 --> 03:29:15,080
WHITE SAMPLE OF TEACHERS.

5512
03:29:15,080 --> 03:29:15,360
NEXT SLIDE.

5513
03:29:15,360 --> 03:29:16,960
ON A BROADER POLICY SCALE WHEN

5514
03:29:16,960 --> 03:29:21,000
WE LOOK AT FEDERAL DOLLARS SPENT

5515
03:29:21,000 --> 03:29:22,760
OR APPROPRIATED, WE SEE THE

5516
03:29:22,760 --> 03:29:25,360
STATES WITH LARGER SHARES OF

5517
03:29:25,360 --> 03:29:26,720
CHILDREN ELIGIBLE FOR SPECIAL

5518
03:29:26,720 --> 03:29:28,440
EDUCATION RECEIVE ON AVERAGE

5519
03:29:28,440 --> 03:29:30,280
FEWER DOLLARS PER CHILD THAN

5520
03:29:30,280 --> 03:29:33,120
OTHER STATES WITH LESS NEED.

5521
03:29:33,120 --> 03:29:35,000
IN ADDITION, LARGE STATES AND

5522
03:29:35,000 --> 03:29:37,640
STATES WITH MORE CHILDREN

5523
03:29:37,640 --> 03:29:41,680
EXPERIENCING POVERTY ALSO

5524
03:29:41,680 --> 03:29:47,720
RECEIVE FEWER IDEA DOLLARS PER

5525
03:29:47,720 --> 03:29:50,040
CHILD. 

5526
03:29:50,040 --> 03:29:51,360
STATES THAT LIKELY NEED AS MUCH

5527
03:29:51,360 --> 03:29:53,000
OR MORE FUNDING TO MEET HIGHER

5528
03:29:53,000 --> 03:29:54,600
LEVELS THAN OTHER STATES ON

5529
03:29:54,600 --> 03:29:56,600
AVERAGE GET FEWER FEDERAL

5530
03:29:56,600 --> 03:29:57,800
SPECIAL EDUCATION DOLLARS FOR

5531
03:29:57,800 --> 03:29:59,880
EACH CHILD WHO RECEIVES SPECIAL

5532
03:29:59,880 --> 03:30:00,320
EDUCATION SERVICES.

5533
03:30:00,320 --> 03:30:03,040
I WANT TO BE SURE I THANK DAVID

5534
03:30:03,040 --> 03:30:04,360
MENDEL FOR THIS SLIDE.

5535
03:30:04,360 --> 03:30:10,800
HE WAS UNABLE TO BE HERE TODAY.

5536
03:30:10,800 --> 03:30:14,320
WHEN WE LOOK AT AUTISTIC ADULTS,

5537
03:30:14,320 --> 03:30:17,680
WE ALSO SEE RACIAL/ETHNIC

5538
03:30:17,680 --> 03:30:18,280
DISPARITIES.

5539
03:30:18,280 --> 03:30:19,680
I'LL WALK US THROUGH.

5540
03:30:19,680 --> 03:30:26,360
AUTISTIC ADULTS MAY HAVE SEVERAL

5541
03:30:26,360 --> 03:30:27,080
CO-OCCURRING CONDITIONS

5542
03:30:27,080 --> 03:30:29,200
DELIVERING BY RACE AND ETHNIC

5543
03:30:29,200 --> 03:30:29,480
GROUP.

5544
03:30:29,480 --> 03:30:33,760
COMPARED TO THE GENERAL MEDICAID

5545
03:30:33,760 --> 03:30:35,640
POPULATION, AUTISTIC ADULT

5546
03:30:35,640 --> 03:30:37,680
MEDICAID BENEFICIARIES HAVE

5547
03:30:37,680 --> 03:30:40,280
ELEVATED ODDS OF SOME HEALTH

5548
03:30:40,280 --> 03:30:42,440
CONDITIONS LIKE EPILEPSY,

5549
03:30:42,440 --> 03:30:43,000
NUTRITION CONDITIONS, SOME

5550
03:30:43,000 --> 03:30:44,920
PSYCHIATRIC CONDITIONS SUCH AS

5551
03:30:44,920 --> 03:30:46,040
ANXIETY, ATTENTION DISORDERS.

5552
03:30:46,040 --> 03:30:48,440
THEY ALSO FOUND MANY OF THE SAME

5553
03:30:48,440 --> 03:30:51,160
HEALTH DISPARITIES BY RACIAL AND

5554
03:30:51,160 --> 03:30:53,040
ETHNIC GROUPS IN THE GENERAL

5555
03:30:53,040 --> 03:30:54,560
POPULATION PERSIST AMONG

5556
03:30:54,560 --> 03:30:55,640
AUTISTIC ADULT MEDICAID

5557
03:30:55,640 --> 03:30:58,520
POPULATION AS WELL.

5558
03:30:58,520 --> 03:31:03,560
FOR EXAMPLE, BLACK, HISPANIC,

5559
03:31:03,560 --> 03:31:04,440
ASIANED MEDICAID BENEFICIARIES

5560
03:31:04,440 --> 03:31:07,440
HAVE HIGHER ODDS OF DIABETES,

5561
03:31:07,440 --> 03:31:09,640
BLAND AND HISPANIC BENEFICIARIES

5562
03:31:09,640 --> 03:31:11,280
HAVE HIGHER OBESITY AND

5563
03:31:11,280 --> 03:31:12,640
NUTRITION CONDITIONS THAN WHITE

5564
03:31:12,640 --> 03:31:13,480
BENEFICIARIES.

5565
03:31:13,480 --> 03:31:16,560
WE'RE SEEING THIS ACROSS AGE

5566
03:31:16,560 --> 03:31:17,320
GROUPS, ACROSS POPULATIONS,

5567
03:31:17,320 --> 03:31:18,840
ACROSS RACIAL AND ETHNIC GROUPS

5568
03:31:18,840 --> 03:31:22,440
AS WELL.

5569
03:31:22,440 --> 03:31:24,120
NEXT SLIDE.

5570
03:31:24,120 --> 03:31:26,160
s THE FINAL EXAMPLE, THIS IS

5571
03:31:26,160 --> 03:31:28,560
JUST A SMATTERING OF LITERATURE

5572
03:31:28,560 --> 03:31:32,760
THAT'S OUT THERE, LOOKING AT

5573
03:31:32,760 --> 03:31:34,200
RACIAL AND ETHNIC DISPARITIES,

5574
03:31:34,200 --> 03:31:38,400
BY AMBER DAVIS AND COLLEAGUES.

5575
03:31:38,400 --> 03:31:40,720
THEY SURVEYED AUTISTIC BLACK AN

5576
03:31:40,720 --> 03:31:42,920
NON-AUTISTIC BLACK YOUNG ADULTS

5577
03:31:42,920 --> 03:31:43,680
TO UNDERSTAND HOW

5578
03:31:43,680 --> 03:31:44,640
INTERSECTIONALITY BETWEEN

5579
03:31:44,640 --> 03:31:46,280
IDENTITY OF RACE AND DISABILITY

5580
03:31:46,280 --> 03:31:47,400
LOOK LIKE.

5581
03:31:47,400 --> 03:31:50,560
AND THEY FOUND THAT AUTISTIC

5582
03:31:50,560 --> 03:31:52,320
BLACK PARTICIPANTS REPORTED

5583
03:31:52,320 --> 03:31:53,720
FEWER EVERYDAY DISCRIMINATORY

5584
03:31:53,720 --> 03:31:56,120
EXPERIENCES THAN NON-AUTISTIC

5585
03:31:56,120 --> 03:31:57,280
BLACK PARTICIPANTS.

5586
03:31:57,280 --> 03:31:59,760
BUT STRESS OR PERCEIVED STRESS

5587
03:31:59,760 --> 03:32:01,160
WAS NOT DIFFERENT.

5588
03:32:01,160 --> 03:32:02,960
BOTH EXPERIENCE HIGH LEVELS OF

5589
03:32:02,960 --> 03:32:03,920
STRESS.

5590
03:32:03,920 --> 03:32:06,080
MOST OF THE NON-AUTISTIC BLACK

5591
03:32:06,080 --> 03:32:07,640
PARTICIPANTS LISTED RACE AS

5592
03:32:07,640 --> 03:32:10,360
THEIR PRIMARY SOURCE OF

5593
03:32:10,360 --> 03:32:11,880
DISCRIMINATION EXPERIENCES,

5594
03:32:11,880 --> 03:32:13,200
WHEREAS AUTISTIC BLACK

5595
03:32:13,200 --> 03:32:14,200
PARTICIPANTS ARE CITING BOTH,

5596
03:32:14,200 --> 03:32:16,480
BEING AUTISTIC AS A MAJOR

5597
03:32:16,480 --> 03:32:18,640
CONTRIBUTOR, AS WELL AS THEIR

5598
03:32:18,640 --> 03:32:19,240
RACE.

5599
03:32:19,240 --> 03:32:21,520
AND SO IT'S REALLY IMPORTANT FOR

5600
03:32:21,520 --> 03:32:23,360
US TO UNDERSTAND

5601
03:32:23,360 --> 03:32:24,160
INTERSECTIONALITY BETWEEN RACE

5602
03:32:24,160 --> 03:32:26,680
AND ETHNICITY AS WELL AS

5603
03:32:26,680 --> 03:32:31,040
DISABILITY AND IDENTITY.

5604
03:32:31,040 --> 03:32:31,320
NEXT SLIDE.

5605
03:32:31,320 --> 03:32:33,920
WHILE WE ONLY PROVIDE A SNAPSHOT

5606
03:32:33,920 --> 03:32:34,960
OF THE RESEARCH HIGHLIGHTING

5607
03:32:34,960 --> 03:32:36,960
RACIAL AND ETHNIC DISPARITIES IN

5608
03:32:36,960 --> 03:32:38,600
AUTISM RESEARCH, THE TAKEHOME

5609
03:32:38,600 --> 03:32:40,360
MESSAGE IS THIS.

5610
03:32:40,360 --> 03:32:41,640
RACIAL AND ETHNIC DISPARITIES

5611
03:32:41,640 --> 03:32:43,080
PERMEATE ALL LEVELS.

5612
03:32:43,080 --> 03:32:46,680
WE SEE THESE DISPARITIES IN

5613
03:32:46,680 --> 03:32:47,240
AUTISTIC CHILDREN, AUTISTIC

5614
03:32:47,240 --> 03:32:49,960
ADULTS, IN DIFFERENT SETTINGS

5615
03:32:49,960 --> 03:32:51,080
LIKE CLINICS, HOSPITALS,

5616
03:32:51,080 --> 03:32:53,360
SCHOOLS, AND EVEN IN FEDERAL LAW

5617
03:32:53,360 --> 03:32:53,680
AND POLICY.

5618
03:32:53,680 --> 03:33:01,720
AND SO WE CAN AND WE NEED TO DO

5619
03:33:01,720 --> 03:33:02,120
BETTER.

5620
03:33:02,120 --> 03:33:02,440
NEXT SLIDE.

5621
03:33:02,440 --> 03:33:04,960
>>IF WE SUM UP A LITTLE
BIT,

5622
03:33:04,960 --> 03:33:07,360
WHAT WE KNOW IS STRUCTURAL

5623
03:33:07,360 --> 03:33:09,800
INEQUITIES LEAD TO DIFFERENCES

5624
03:33:09,800 --> 03:33:12,840
IN BASICALLY THREE AREAS.

5625
03:33:12,840 --> 03:33:17,560
DIFFERENCES IN ACCESS TO GOODS,

5626
03:33:17,560 --> 03:33:19,720
SERVICES, AND RESOURCES.

5627
03:33:19,720 --> 03:33:22,040
DIFFERENTIAL OUTCOMES BY RACE

5628
03:33:22,040 --> 03:33:23,560
AND ETHNICITY.

5629
03:33:23,560 --> 03:33:25,440
AND DIFFERENTIAL EXPERIENCES

5630
03:33:25,440 --> 03:33:26,720
THAT ARE OFTEN INFERIOR IN

5631
03:33:26,720 --> 03:33:29,280
QUALITY, SO IF YOU TAKE THAT ONE

5632
03:33:29,280 --> 03:33:39,800
STUDY JILL LOOKED AT, THAT BLACK

5633
03:33:41,360 --> 03:33:43,480
AUTISTIC STUDENTS MORE LIKELY TO

5634
03:33:43,480 --> 03:33:44,560
BE IN CERTAIN SETTINGS,

5635
03:33:44,560 --> 03:33:45,560
DIFFERENT SCHOOL EXPERIENCES ARE

5636
03:33:45,560 --> 03:33:49,280
HAPPENING FOR THEM.

5637
03:33:49,280 --> 03:33:50,920
NEXT SLIDE PLEASE.

5638
03:33:50,920 --> 03:33:56,280
SO JUST ONE EXAMPLE HERE, SARAH

5639
03:33:56,280 --> 03:34:04,920
AND COLLEAGUES TAKING FROM DR.

5640
03:34:04,920 --> 03:34:05,560
MAGAÑA'S WORK, MANUALIZED

5641
03:34:05,560 --> 03:34:07,520
PROGRAM FOR BLACK PARENTS OF

5642
03:34:07,520 --> 03:34:08,960
AUTISTIC CHILDREN AND REALLY

5643
03:34:08,960 --> 03:34:11,600
APPLIED WHAT'S CALLED A SHARP

5644
03:34:11,600 --> 03:34:13,360
FRAMEWORK TO ADAPT THIS

5645
03:34:13,360 --> 03:34:18,920
INTERVENTION, IT'S A PARENT

5646
03:34:18,920 --> 03:34:19,400
ADVOCACY INTERVENTION.

5647
03:34:19,400 --> 03:34:21,640
THE SHARP FRAMEWORK HAD THEM

5648
03:34:21,640 --> 03:34:22,520
THINK ABOUT STRUCTURAL

5649
03:34:22,520 --> 03:34:26,040
OPPRESSION THIS GROUP HAS BEEN

5650
03:34:26,040 --> 03:34:28,880
FACING, HISTORICAL CONTEXT OF

5651
03:34:28,880 --> 03:34:30,440
COMMUNITY, WHY BLACK PARENTS MAY

5652
03:34:30,440 --> 03:34:33,120
COME TO RESEARCH WITH MISTRUST

5653
03:34:33,120 --> 03:34:33,880
BECAUSE OF HISTORICAL ISSUES

5654
03:34:33,880 --> 03:34:37,200
THAT HAVE HAPPENED TO THE BLACK

5655
03:34:37,200 --> 03:34:40,640
COMMUNITY AND PARTICIPATION IN

5656
03:34:40,640 --> 03:34:42,680
RESEARCH, REALLY HAS THE

5657
03:34:42,680 --> 03:34:44,400
RESEARCHER TAKE INTO ACCOUNT

5658
03:34:44,400 --> 03:34:46,480
PROVIDER'S ROLE, IS THE PROVIDER

5659
03:34:46,480 --> 03:34:51,280
THERE TO MAINTAIN OR HELP

5660
03:34:51,280 --> 03:34:53,480
DISRUPT THE STATUS QUO, AND

5661
03:34:53,480 --> 03:34:54,720
RECIPROCITY IN RELATIONSHIP

5662
03:34:54,720 --> 03:34:57,440
BETWEEN PROVIDER AND CLIENT, NOT

5663
03:34:57,440 --> 03:34:57,960
JUST UNDERSTANDING POWER

5664
03:34:57,960 --> 03:34:59,800
DYNAMICS OF THE RELATIONSHIP

5665
03:34:59,800 --> 03:35:01,160
BETWEEN THE PROVIDER AND CLIENT

5666
03:35:01,160 --> 03:35:03,840
BUT MORE SO WORKING TO SUPPORT

5667
03:35:03,840 --> 03:35:06,320
THE CLIENT'S POWER AND ABILITY

5668
03:35:06,320 --> 03:35:13,640
TO ENGAGE IN ADVOCACY AND WORK

5669
03:35:13,640 --> 03:35:24,040
TO CHANGE THEIR CURRENT

5670
03:35:44,880 --> 03:35:45,320
CIRCUMSTANCES.

5671
03:35:45,320 --> 03:35:51,400
HEALTH EQUITY IS THE STATE IN

5672
03:35:51,400 --> 03:35:52,960
WHICH EVERYONE HAS OPPORTUNITY.

5673
03:35:52,960 --> 03:35:55,640
AND RACIAL EQUITY IS DEFINED AS

5674
03:35:55,640 --> 03:35:57,760
A PROCESS OF ELIMINATING RACIAL

5675
03:35:57,760 --> 03:35:59,040
DISPARITIES AND IMPROVING

5676
03:35:59,040 --> 03:36:00,800
OUTCOMES FOR EVERYONE.

5677
03:36:00,800 --> 03:36:02,120
IT IS THE INTENTIONAL AND

5678
03:36:02,120 --> 03:36:05,520
CONTINUAL PRACTICE OF CHANGING

5679
03:36:05,520 --> 03:36:08,560
POLICIES, PRACTICES, SYSTEMS,

5680
03:36:08,560 --> 03:36:10,360
AND STRUCTURES BY PRIORITIZING

5681
03:36:10,360 --> 03:36:19,200
MEASURABLE CHANGE IN THE LIVES

5682
03:36:19,200 --> 03:36:23,920
OF PEOPLE OF COLOR. 

5683
03:36:23,920 --> 03:36:25,000
THEY ARE NOT SYNONYMOUS.

5684
03:36:25,000 --> 03:36:30,720
IF WE THINK ABOUT OUTCOMES WHAT

5685
03:36:30,720 --> 03:36:31,760
ARE WE TALKING ABOUT?

5686
03:36:31,760 --> 03:36:34,840
IT'S GOOD TO HAVE WORKING

5687
03:36:34,840 --> 03:36:35,920
DEFINITIONS, TO ACHIEVE HEALTH

5688
03:36:35,920 --> 03:36:38,000
EQUITY FOR ALL AND RACIAL EQUITY

5689
03:36:38,000 --> 03:36:42,400
AS WELL FOR AUTISTIC PEOPLE OF

5690
03:36:42,400 --> 03:36:48,080
COLOR.

5691
03:36:48,080 --> 03:36:49,080
NEXT SLIDE PLEASE.

5692
03:36:49,080 --> 03:36:51,160
>>ONE POTENTIAL PATHWAY
IS TO

5693
03:36:51,160 --> 03:36:52,560
THINK ABOUT AND DEVELOP PROGRAMS

5694
03:36:52,560 --> 03:36:55,120
FROM THE GROUND UP, AS OPPOSED

5695
03:36:55,120 --> 03:36:58,480
TO TRADITIONAL METHODS OF

5696
03:36:58,480 --> 03:36:59,120
RESEARCH TESTING ENGINE THROUGH

5697
03:36:59,120 --> 03:37:01,760
CLINICAL TRIALS WHICH MAY END UP

5698
03:37:01,760 --> 03:37:05,160
OR NOT IMPLEMENTED IN

5699
03:37:05,160 --> 03:37:05,680
UNDERSERVED COMMUNITIES,

5700
03:37:05,680 --> 03:37:07,800
IMPORTANT FOR US TO THINK AND

5701
03:37:07,800 --> 03:37:09,440
SUPPORT COMMUNITIES AND

5702
03:37:09,440 --> 03:37:12,280
DEVELOPMENT OF INHERENTLY

5703
03:37:12,280 --> 03:37:12,720
CULTURALLY GROUNDED

5704
03:37:12,720 --> 03:37:15,360
INTERVENTIONS, AND ONE WAY IS TO

5705
03:37:15,360 --> 03:37:15,880
STUDY PRACTICE-BASED

5706
03:37:15,880 --> 03:37:19,240
INTERVENTIONS AS THEY MIGHT BE

5707
03:37:19,240 --> 03:37:20,680
MORE FEASIBLY IMPLEMENTED IN

5708
03:37:20,680 --> 03:37:22,800
EVERYDAY PRACTICE.

5709
03:37:22,800 --> 03:37:25,640
SO WHAT ARE PRACTICE-BASED

5710
03:37:25,640 --> 03:37:26,600
INTERVENTIONS?  THEY EMERGE FROM

5711
03:37:26,600 --> 03:37:29,480
PRACTICE THAT MAY HAVE ADVANTAGE

5712
03:37:29,480 --> 03:37:31,880
EXPIRED TO UNIVERSITY-DEVELOPED

5713
03:37:31,880 --> 03:37:32,720
INTERVENTIONS OR CLINIC-BASED

5714
03:37:32,720 --> 03:37:34,200
INTERVENTIONS, THAT MUCH OF THE

5715
03:37:34,200 --> 03:37:36,560
WORK OF FITTING THE TREATMENT OR

5716
03:37:36,560 --> 03:37:38,400
SUPPORT OR INTERVENTION TO THE

5717
03:37:38,400 --> 03:37:40,200
SETTINGS HAS ALREADY BEEN DONE.

5718
03:37:40,200 --> 03:37:41,880
SO THE INTERVENTION IS MORE

5719
03:37:41,880 --> 03:37:43,360
APPROPRIATE AND RELEVANT TO THE

5720
03:37:43,360 --> 03:37:45,560
COMMUNITY AND THE PEOPLE THAT

5721
03:37:45,560 --> 03:37:46,520
ULTIMATELY WILL BE REACHED BY

5722
03:37:46,520 --> 03:37:55,360
THAT SERVICE OR THAT SUPPORT OR

5723
03:37:55,360 --> 03:37:56,040
THAT INTERVENTION.

5724
03:37:56,040 --> 03:37:57,880
THEY MAY HAVE A BETTER CHANCE

5725
03:37:57,880 --> 03:37:59,240
BEING USED AND SUSTAINED THAN

5726
03:37:59,240 --> 03:38:02,920
THOSE DEVELOPED IN OTHER

5727
03:38:02,920 --> 03:38:05,760
SETTINGS LIKE UNIVERSITIES OR

5728
03:38:05,760 --> 03:38:06,000
CLINICS.

5729
03:38:06,000 --> 03:38:06,880
PRACTICE-BASED RESEARCH

5730
03:38:06,880 --> 03:38:08,040
INCREASES LIKELIHOOD THAT

5731
03:38:08,040 --> 03:38:10,760
RESULTING INTERVENTIONS WILL BE

5732
03:38:10,760 --> 03:38:14,920
MORE CULTURALLY RELEVANT,

5733
03:38:14,920 --> 03:38:16,280
TAILORED AROUND ACTIONABLE THAN

5734
03:38:16,280 --> 03:38:18,000
IN A LABORATORY OR UNIVERSITY

5735
03:38:18,000 --> 03:38:18,680
BASED SETTINGS.

5736
03:38:18,680 --> 03:38:21,520
THERE'S A LOT OF UTILITY AND

5737
03:38:21,520 --> 03:38:26,520
VALUE IN LEARNING FROM WHAT

5738
03:38:26,520 --> 03:38:30,600
HAPPEN IN PRACTICE.

5739
03:38:30,600 --> 03:38:31,800
NEXT SLIDE.

5740
03:38:31,800 --> 03:38:35,880
WE THOUGHT ABOUT POTENTIAL NEXT

5741
03:38:35,880 --> 03:38:36,640
STEPS.

5742
03:38:36,640 --> 03:38:42,560
FIRST WE MUST DISENTANGLE.

5743
03:38:42,560 --> 03:38:43,640
MANY PUBLISHED RESEARCH TRIALS

5744
03:38:43,640 --> 03:38:45,400
DON'T LOOK AT THIS OUTCOME AND

5745
03:38:45,400 --> 03:38:48,480
IT'S AN IMPORTANT ONE WE CANNOT

5746
03:38:48,480 --> 03:38:50,000
IGNORE OR FORGET.

5747
03:38:50,000 --> 03:38:53,040
WE ALSO NEED TO INVOLVE AUTISTIC

5748
03:38:53,040 --> 03:38:53,320
ADVOCATES.

5749
03:38:53,320 --> 03:38:56,040
WE'VE BEEN DOING A LITTLE BIT

5750
03:38:56,040 --> 03:38:57,040
BETTER AT THAT IN RECENT

5751
03:38:57,040 --> 03:38:59,520
RESEARCH BUT MORE WORK NEEDS TO

5752
03:38:59,520 --> 03:39:03,480
BE DONE.

5753
03:39:03,480 --> 03:39:04,560
ESPECIALLY TO INCLUDE

5754
03:39:04,560 --> 03:39:05,680
SELF-ADVOCATES OF COLOR AND

5755
03:39:05,680 --> 03:39:09,840
REALLY TO THINK ABOUT HOW WE CAN

5756
03:39:09,840 --> 03:39:10,680
BETTER UNDERSTAND THAT

5757
03:39:10,680 --> 03:39:12,240
INTERSECTIONALITY OF RACE AND

5758
03:39:12,240 --> 03:39:13,160
AUTISM.

5759
03:39:13,160 --> 03:39:17,800
WE ALSO NEED TO DEVELOP AND

5760
03:39:17,800 --> 03:39:21,000
EVALUATE CULTURALLY RESPONSIVE

5761
03:39:21,000 --> 03:39:21,640
INTERVENTION AND ANTI-RACIST

5762
03:39:21,640 --> 03:39:22,600
PROGRAMS FOR INDIVIDUALS AND

5763
03:39:22,600 --> 03:39:23,200
FAMILIES.

5764
03:39:23,200 --> 03:39:26,200
AND WE NEED TO INCREASE

5765
03:39:26,200 --> 03:39:27,320
WORKFORCE DIVERSITY, BOTH AMONG

5766
03:39:27,320 --> 03:39:28,960
RESEARCH TEAMS AND BETWEEN

5767
03:39:28,960 --> 03:39:32,360
PROVIDER AND CLIENT OR SCHOOL

5768
03:39:32,360 --> 03:39:33,560
EDUCATOR AND STUDENTS, THAT

5769
03:39:33,560 --> 03:39:37,080
INCLUDES NOT JUST RACE AND

5770
03:39:37,080 --> 03:39:38,360
ETHNICITY BUT NEURODIVERSITY.

5771
03:39:38,360 --> 03:39:40,480
WE ALSO NEED TO FUND EXISTING

5772
03:39:40,480 --> 03:39:42,240
SYSTEMS AND CHANGE POLICIES THAT

5773
03:39:42,240 --> 03:39:43,640
CONTRIBUTE TO INEQUITIES.

5774
03:39:43,640 --> 03:39:46,160
SO THINKING ABOUT, AGAIN,

5775
03:39:46,160 --> 03:39:47,000
SPECIAL EDUCATION DOLLARS

5776
03:39:47,000 --> 03:39:47,880
APPROPRIATED.

5777
03:39:47,880 --> 03:39:51,360
AND WE NEED FUNDING MECHANISMS

5778
03:39:51,360 --> 03:39:52,480
AND MECHANISMS BEYOND SINGLE

5779
03:39:52,480 --> 03:39:55,880
R01s TO THINK ABOUT AND

5780
03:39:55,880 --> 03:39:57,880
ADDRESS HEALTH AND RACIAL EQUITY

5781
03:39:57,880 --> 03:40:00,920
IN AUTISM, LIKE BRIAN MENTIONED

5782
03:40:00,920 --> 03:40:04,080
TWO DISTINCT CONSTRUCTS.

5783
03:40:04,080 --> 03:40:05,160
NEXT SLIDE.

5784
03:40:05,160 --> 03:40:09,880
AND SO WE WANT TO THANK OUR

5785
03:40:09,880 --> 03:40:10,480
COLLEAGUES FOR THEIR

5786
03:40:10,480 --> 03:40:11,640
CONTRIBUTIONS TO THIS PROJECT.

5787
03:40:11,640 --> 03:40:19,200
THANK YOU FOR HAVING US TODAY

5788
03:40:19,200 --> 03:40:24,680
AND FOR YOUR TIME.

5789
03:40:24,680 --> 03:40:30,080
>>THANK YOU. 

5790
03:40:30,080 --> 03:40:34,360
THE NEXT SPEAKER IS DR. SANDY

5791
03:40:34,360 --> 03:40:38,640
MAGAÑA, PROFESSOR OF AUTISM AND

5792
03:40:38,640 --> 03:40:39,400
NEURODEVELOPMENTAL DISABILITIES,

5793
03:40:39,400 --> 03:40:47,360
UNIVERSITY OF TEXAS AUSTIN.

5794
03:40:47,360 --> 03:40:48,120
WELCOME AND THANK YOU

5795
03:40:48,120 --> 03:40:49,320
>>THANK YOU.

5796
03:40:49,320 --> 03:40:53,760
I ENJOYED THE PREVIOUS

5797
03:40:53,760 --> 03:40:54,680
PRESENTATION, HOPEFULLY MINE CAN

5798
03:40:54,680 --> 03:41:00,040
MAP ON BECAUSE I TOTALLY -- THE

5799
03:41:00,040 --> 03:41:00,800
UNDERSTANDING OF STRUCTURAL

5800
03:41:00,800 --> 03:41:01,800
INEQUITIES AND RACISM THAT

5801
03:41:01,800 --> 03:41:06,080
GOINGS ON AND HOW IT CONTRIBUTES

5802
03:41:06,080 --> 03:41:09,760
TO THE  LIVES OF PEOPLE WITH

5803
03:41:09,760 --> 03:41:12,080
AUTISM IN THEIR FAMILIES.

5804
03:41:12,080 --> 03:41:14,520
I'M GOING TO TALK -- NEXT SLIDE.

5805
03:41:14,520 --> 03:41:16,480
I KEEP THINKING I'M THE ONE THAT

5806
03:41:16,480 --> 03:41:18,480
HAS TO MOVE THE SLIDE.

5807
03:41:18,480 --> 03:41:21,520
I'M GOING TO TALK ABOUT

5808
03:41:21,520 --> 03:41:22,840
EXTENDING, LOOKING AT RACIAL AND

5809
03:41:22,840 --> 03:41:31,520
ETHNIC DISPARITIES IN HEALTH

5810
03:41:31,520 --> 03:41:32,720
OUTCOMES, WORK ON RELATIONSHIP

5811
03:41:32,720 --> 03:41:35,800
TO THAT, BUILDING ON THE IDEA

5812
03:41:35,800 --> 03:41:40,360
MENTIONED ABOUT CULTURALLY

5813
03:41:40,360 --> 03:41:41,800
TAILORED INTERVENTION AND WHY WE

5814
03:41:41,800 --> 03:41:47,280
NEED MORE FUNDING FOR THAT IN

5815
03:41:47,280 --> 03:41:51,200
AUTISM, AND INTERVENTION WE'RE

5816
03:41:51,200 --> 03:42:01,680
DEVELOPING FROM STUDY CALLED

5817
03:42:02,400 --> 03:42:03,240
PODER.

5818
03:42:03,240 --> 03:42:05,880
SO, WE HEARD A LOT OF OVERVIEW

5819
03:42:05,880 --> 03:42:07,600
OF RESEARCH GOING ON ON

5820
03:42:07,600 --> 03:42:09,680
DISPARITIES AND AUTISM, RACIAL

5821
03:42:09,680 --> 03:42:10,800
AND ETHNIC DISPARITIES, AND I

5822
03:42:10,800 --> 03:42:11,760
THINK THAT WAS REALLY GOOD.

5823
03:42:11,760 --> 03:42:13,640
I WANT TO GET HOLD OF SLIDES SO

5824
03:42:13,640 --> 03:42:15,960
I CAN LOOK INTO THE STUDY, MANY

5825
03:42:15,960 --> 03:42:18,040
OF THE STUDIES THAT WERE

5826
03:42:18,040 --> 03:42:19,760
HIGHLIGHTED THERE.

5827
03:42:19,760 --> 03:42:25,120
WE TALKED ABOUT DISPARITIES AND

5828
03:42:25,120 --> 03:42:26,360
DIFFERENCES IN DIAGNOSIS, AND

5829
03:42:26,360 --> 03:42:27,760
DISPARITIES IN AGE OF DIAGNOSIS,

5830
03:42:27,760 --> 03:42:32,120
ALL OF THAT SORT OF THING,

5831
03:42:32,120 --> 03:42:32,720
DISPARITIES IN SPECIALTY

5832
03:42:32,720 --> 03:42:33,920
SERVICES HAS BEEN DONE IN

5833
03:42:33,920 --> 03:42:34,280
EDUCATION.

5834
03:42:34,280 --> 03:42:36,320
A LOT OF WHAT WAS HIGHLIGHTED

5835
03:42:36,320 --> 03:42:37,320
PREVIOUSLY HAD TO DO WITH

5836
03:42:37,320 --> 03:42:39,840
EDUCATION AND I'VE DONE SOME

5837
03:42:39,840 --> 03:42:44,560
WORK ON DISPARITIES IN HEALTH

5838
03:42:44,560 --> 03:42:45,400
CARE ACCESS AND QUALITY.

5839
03:42:45,400 --> 03:42:46,840
AND OF COURSE WE NEED MORE

5840
03:42:46,840 --> 03:42:50,440
RESEARCH ON ALL OF THOSE THINGS

5841
03:42:50,440 --> 03:42:51,160
RIGHT NOW.

5842
03:42:51,160 --> 03:42:57,000
BUT I THINK WE ALSO NEED TO

5843
03:42:57,000 --> 03:43:00,280
FOCUS ON HEALTH OUTCOMES, AND

5844
03:43:00,280 --> 03:43:02,120
EXPLORE -- AS BRIAN SAID, IT'S

5845
03:43:02,120 --> 03:43:03,320
IMPORTANT TO UNDERSTAND THAT YOU

5846
03:43:03,320 --> 03:43:05,960
HAVE TO IDENTIFY THOSE

5847
03:43:05,960 --> 03:43:07,320
DISPARITIES IN ORDER TO CREATE

5848
03:43:07,320 --> 03:43:08,160
EQUITY, RIGHT?

5849
03:43:08,160 --> 03:43:11,760
IN ORDER TO LEAD TO EQUITY OR

5850
03:43:11,760 --> 03:43:12,640
DEVELOP INTERVENTIONS TOWARDS

5851
03:43:12,640 --> 03:43:13,560
EQUITY, IT'S IMPORTANT TO

5852
03:43:13,560 --> 03:43:17,000
IDENTIFY WHERE THE ISSUES ARE.

5853
03:43:17,000 --> 03:43:20,840
AND SO WE NEED TO UNDERSTAND

5854
03:43:20,840 --> 03:43:22,280
ACTUAL PHYSICAL HEALTH OUTCOMES

5855
03:43:22,280 --> 03:43:23,600
FOR ADULTS AND CHILDREN,

5856
03:43:23,600 --> 03:43:26,760
AUTISTIC ADULTS AND CHILDREN,

5857
03:43:26,760 --> 03:43:28,640
ALSO WHAT CONTRIBUTES AND HOW WE

5858
03:43:28,640 --> 03:43:33,000
CAN ADDRESS IT.

5859
03:43:33,000 --> 03:43:33,640
NEXT SLIDE.

5860
03:43:33,640 --> 03:43:38,560
I'M GOING TO TELL YOU ABOUT WORK

5861
03:43:38,560 --> 03:43:40,880
WITH A GROUP WITH THE HEALTHY

5862
03:43:40,880 --> 03:43:42,120
WEIGHT RESEARCH NETWORK, FUNDED

5863
03:43:42,120 --> 03:43:47,000
BY HRSA, ONE OF THE MEMBER

5864
03:43:47,000 --> 03:43:47,880
ORGANIZATIONS HERE.

5865
03:43:47,880 --> 03:43:49,960
AND WE WERE LOOKING AT RACIAL

5866
03:43:49,960 --> 03:43:51,280
AND ETHNIC DISPARITIES IN

5867
03:43:51,280 --> 03:43:54,240
OBESITY AND OVERWEIGHT STATUS

5868
03:43:54,240 --> 03:43:59,160
AMONG BOYS WITH AUTISM.

5869
03:43:59,160 --> 03:44:00,480
NEXT SLIDE.

5870
03:44:00,480 --> 03:44:05,720
WE LOOKED AT THE ABCD STUDY, AN

5871
03:44:05,720 --> 03:44:07,160
NIH-FUNDED STUDY, ADOLESCENT

5872
03:44:07,160 --> 03:44:08,920
BRAIN COGNITIVE DEVELOPMENT

5873
03:44:08,920 --> 03:44:09,320
STUDY.

5874
03:44:09,320 --> 03:44:14,480
WHAT'S NICE, IT'S A VERY LARGE

5875
03:44:14,480 --> 03:44:18,760
SAMPLE THAT DOES -- HAS MOSTLY

5876
03:44:18,760 --> 03:44:20,760
STAGE PROBABILITY, SAMPLE OF

5877
03:44:20,760 --> 03:44:24,400
CHILDREN BETWEEN 9 AND 10, AND

5878
03:44:24,400 --> 03:44:28,400
THEY DO HAVE A LOT OF SOCIAL

5879
03:44:28,400 --> 03:44:30,120
DETERMINANTS OF HEALTH IN

5880
03:44:30,120 --> 03:44:31,440
THEIR -- AS VARIABLES IN THIS

5881
03:44:31,440 --> 03:44:33,400
DATASET WHICH I THINK IS NICE.

5882
03:44:33,400 --> 03:44:34,840
I'LL TALK BRIEFLY ABOUT THAT

5883
03:44:34,840 --> 03:44:37,680
WHEN I GET TO TALKING ABOUT

5884
03:44:37,680 --> 03:44:40,200
RESULTS, BUT IN THIS ANALYSIS WE

5885
03:44:40,200 --> 03:44:41,840
SELECTED ONLY BOYS BECAUSE THE

5886
03:44:41,840 --> 03:44:45,920
SAMPLE OF GIRLS IS SMALL.

5887
03:44:45,920 --> 03:44:47,680
SAMPLE OF PEOPLE WITH AUTISM IS

5888
03:44:47,680 --> 03:44:50,520
VERY SMALL IN THIS STUDY.

5889
03:44:50,520 --> 03:44:51,720
WHEN YOU NARROW DOWN BY GENDER

5890
03:44:51,720 --> 03:44:55,080
IT'S VERY SMALL.

5891
03:44:55,080 --> 03:44:56,080
WE'RE LOOKING SPECIFICALLY AT

5892
03:44:56,080 --> 03:45:02,000
BOYS BETWEEN 9 AND 10.

5893
03:45:02,000 --> 03:45:03,960
NEXT SLIDE.

5894
03:45:03,960 --> 03:45:06,480
WE DID MEAN COMPARISONS ON BODY

5895
03:45:06,480 --> 03:45:07,800
MASS INDEX, DISEASE SCORE OF

5896
03:45:07,800 --> 03:45:09,560
BODY MASS INDEX.

5897
03:45:09,560 --> 03:45:13,280
YOU CAN SEE KIND OF A SIMILAR

5898
03:45:13,280 --> 03:45:13,520
PATTERN.

5899
03:45:13,520 --> 03:45:15,560
SO YOU SEE THAT THE NON-LATINO

5900
03:45:15,560 --> 03:45:19,720
WHITES IN THE MIDDLE HAVE THE

5901
03:45:19,720 --> 03:45:21,880
LOWEST BMI SCORE.

5902
03:45:21,880 --> 03:45:25,560
AND IT'S SIGNIFICANTLY LOWER.

5903
03:45:25,560 --> 03:45:29,360
AND, YEAH, NEXT SLIDE.

5904
03:45:29,360 --> 03:45:34,840
WHEN YOU DIVIDE INTO OVERWEIGHT

5905
03:45:34,840 --> 03:45:36,360
OBESITY STATUS, COMBINING

5906
03:45:36,360 --> 03:45:37,640
OVERWEIGHT AND OBESITY USING BMI

5907
03:45:37,640 --> 03:45:39,960
SCORE YOU CAN SEE THAT PATTERN

5908
03:45:39,960 --> 03:45:45,080
HERE A LITTLE MORE STARKLY, VERY

5909
03:45:45,080 --> 03:45:47,520
SIGNIFICANT FINDINGS WHERE WHITE

5910
03:45:47,520 --> 03:45:50,360
CHILDREN HAVE THE LOWEST RATE OF

5911
03:45:50,360 --> 03:45:53,440
OBESITY, OVERWEIGHT OR OBESITY

5912
03:45:53,440 --> 03:45:57,160
STATUS, THEN LATINO AND BLACK.

5913
03:45:57,160 --> 03:45:58,520
WE'VE DONE SOME FURTHER ANALYSIS

5914
03:45:58,520 --> 03:46:03,040
JUST LOOKING AT SOME OF THOSE

5915
03:46:03,040 --> 03:46:05,160
SOCIAL DETERMINANT ISSUES THAT

5916
03:46:05,160 --> 03:46:06,560
BRIAN HIGHLIGHTED, THINGS LIKE

5917
03:46:06,560 --> 03:46:13,440
NOT ONLY -- LIKE NEIGHBORHOOD

5918
03:46:13,440 --> 03:46:19,000
ENVIRONMENT, WHERE PEOPLE LIVE,

5919
03:46:19,000 --> 03:46:19,480
SOCIOECONOMIC CONDITION,

5920
03:46:19,480 --> 03:46:21,880
DIFFERENT BETWEEN WHITE, LATINO,

5921
03:46:21,880 --> 03:46:32,400
BLACK, COMPARED TO QUITE, QUITE

5922
03:46:34,960 --> 03:46:35,200
DIFFERENT.

5923
03:46:35,200 --> 03:46:43,000
IT'S HARD TO GET TO THAT POINT.

5924
03:46:43,000 --> 03:46:43,880
NEXT SLIDE.

5925
03:46:43,880 --> 03:46:46,160
LOOKING AT OBESITY IS IMPORTANT

5926
03:46:46,160 --> 03:46:48,120
AND OTHER HEALTH OUTCOMES.

5927
03:46:48,120 --> 03:46:48,760
IT WAS MENTIONED PREVIOUSLY

5928
03:46:48,760 --> 03:46:51,880
DIABETES AND OTHER THINGS MIGHT

5929
03:46:51,880 --> 03:46:53,160
BE DIFFERENT FOR RACIAL AND

5930
03:46:53,160 --> 03:46:58,400
ETHNIC GROUPS, AND WE DO KNOW

5931
03:46:58,400 --> 03:47:00,560
THAT LATINO, FOR EXAMPLE, BLACK

5932
03:47:00,560 --> 03:47:03,320
CHILDREN COMPARED TO WHITE IN

5933
03:47:03,320 --> 03:47:04,360
GENERAL IN THE GENERAL

5934
03:47:04,360 --> 03:47:06,840
POPULATION, YOU KNOW, THERE ARE

5935
03:47:06,840 --> 03:47:10,560
DISPARITIES, AND THERE ARE

5936
03:47:10,560 --> 03:47:14,400
DISPARITIES BETWEEN AUTISTIC

5937
03:47:14,400 --> 03:47:15,240
CHILDREN AND TYPICALLY

5938
03:47:15,240 --> 03:47:16,480
DEVELOPING CHILDREN IN OBESITY

5939
03:47:16,480 --> 03:47:18,760
AS WELL, REALLY IMPORTANT TO

5940
03:47:18,760 --> 03:47:19,320
LOOK AT THOSE INTERSECTIONS.

5941
03:47:19,320 --> 03:47:21,880
THIS IS A STUDY WE'RE DOING

5942
03:47:21,880 --> 03:47:24,880
THAT'S ALSO FUNDED BY A PARTNER

5943
03:47:24,880 --> 03:47:28,080
AGENCY, ADMINISTRATION ON

5944
03:47:28,080 --> 03:47:30,120
COMMUNITY LIVING, NIDILRR, WE'RE

5945
03:47:30,120 --> 03:47:34,320
LOOKING AT PROMOTING OBESITY

5946
03:47:34,320 --> 03:47:41,280
PREVENTION, PROMOTING HEALTH,

5947
03:47:41,280 --> 03:47:45,560
POSITIVE HEALTH OUTCOMES.

5948
03:47:45,560 --> 03:47:51,360
IN THIS STUDY WE INTERVIEWED 100

5949
03:47:51,360 --> 03:47:52,680
PARENT-CHILD DYADS, LATINO

5950
03:47:52,680 --> 03:47:56,280
PARENT-CHILD DYADS IN TEXAS AND

5951
03:47:56,280 --> 03:47:56,520
ILLINOIS.

5952
03:47:56,520 --> 03:48:02,520
PARTNERS IN ILLINOIS LED BY

5953
03:48:02,520 --> 03:48:05,120
YOLANDA BEL CASAR, FINDING THE

5954
03:48:05,120 --> 03:48:08,200
BLUE IS HIGHEST RATE OF OBESITY

5955
03:48:08,200 --> 03:48:09,880
THERE, COMPARED TO GENERAL

5956
03:48:09,880 --> 03:48:10,960
SAMPLE OF MEXICAN AMERICAN

5957
03:48:10,960 --> 03:48:13,480
CHILDREN, ALSO VERY HIGH, BUT

5958
03:48:13,480 --> 03:48:15,320
OURS IS SLIGHTLY HIGHER.

5959
03:48:15,320 --> 03:48:17,720
A SAMPLE OF AUTISTIC CHILDREN.

5960
03:48:17,720 --> 03:48:18,920
SO SIGNIFICANTLY HIGHER THAN

5961
03:48:18,920 --> 03:48:20,800
THOSE GROUPS.

5962
03:48:20,800 --> 03:48:22,960
YOU CAN SEE HOW THE INTERSECTION

5963
03:48:22,960 --> 03:48:27,800
PLAYS OUT WITHIN THE SAMPLE.

5964
03:48:27,800 --> 03:48:32,680
WE ARE DOING FURTHER RESEARCH ON

5965
03:48:32,680 --> 03:48:33,240
THAT.

5966
03:48:33,240 --> 03:48:35,120
WE'RE WORKING ON UNDERSTANDING A

5967
03:48:35,120 --> 03:48:38,280
LITTLE BIT ABOUT WHAT

5968
03:48:38,280 --> 03:48:42,880
CONTRIBUTES TO BMI PERCENTILE

5969
03:48:42,880 --> 03:48:43,560
AMONG THESE CHILDREN.

5970
03:48:43,560 --> 03:48:45,880
ONE OF THE THINGS WE EXAMINED

5971
03:48:45,880 --> 03:48:47,800
WAS PARENTING DIET STRATEGIES.

5972
03:48:47,800 --> 03:48:51,160
WHAT'S INTERESTING IN THE

5973
03:48:51,160 --> 03:48:54,240
GENERAL LITERATURE FOR CHILDREN,

5974
03:48:54,240 --> 03:48:59,840
AND DIET AND EXERCISE STRATEGIES

5975
03:48:59,840 --> 03:49:01,560
RELATED TO BMI IS THAT THEY SAY

5976
03:49:01,560 --> 03:49:03,760
IT'S BETTER TO MONITOR YOUR

5977
03:49:03,760 --> 03:49:10,120
CHILD BUT NOT TO BE CONTROLLING.

5978
03:49:10,120 --> 03:49:11,000
CONTROLLING STRATEGIES WOULD BE

5979
03:49:11,000 --> 03:49:12,440
LIKE TELLING YOUR CHILD THEY

5980
03:49:12,440 --> 03:49:13,760
NEED TO EAT EVERYTHING ON THE

5981
03:49:13,760 --> 03:49:14,280
PLATE.

5982
03:49:14,280 --> 03:49:18,640
MY PARENTS TOLD ME THAT.

5983
03:49:18,640 --> 03:49:21,840
AND MONITORING MIGHT BE JUST

5984
03:49:21,840 --> 03:49:23,240
MAYBE MAKING SUGGESTIONS AND,

5985
03:49:23,240 --> 03:49:24,360
YOU KNOW, SETTING EXAMPLE,

5986
03:49:24,360 --> 03:49:26,320
KEEPING TRACK OF WHAT THE

5987
03:49:26,320 --> 03:49:28,520
CHILDREN ARE EATING, RIGHT?

5988
03:49:28,520 --> 03:49:29,360
SIMILARLY WITH PHYSICAL

5989
03:49:29,360 --> 03:49:29,920
ACTIVITY.

5990
03:49:29,920 --> 03:49:31,880
BUT WHAT WE FOUND IS

5991
03:49:31,880 --> 03:49:32,320
INTERESTING.

5992
03:49:32,320 --> 03:49:38,120
WE FOUND THAT ACTUALLY PARENTS

5993
03:49:38,120 --> 03:49:40,440
WHO USE CONTROLLING STRATEGIES

5994
03:49:40,440 --> 03:49:42,320
CHILDREN ARE LOWER BMI.

5995
03:49:42,320 --> 03:49:45,120
THIS IS AN EXAMPLE OF LATINO

5996
03:49:45,120 --> 03:49:46,760
CHILDREN THAT HAD AUTISM,

5997
03:49:46,760 --> 03:49:48,320
INTELLECTUAL DISABILITY OR DOWN

5998
03:49:48,320 --> 03:49:53,240
SYNDROME BUT I WOULD SAY

5999
03:49:53,240 --> 03:49:55,640
MAJORITY AUTISM.

6000
03:49:55,640 --> 03:49:57,080
SIMILAR FINDING WITH PHYSICAL

6001
03:49:57,080 --> 03:49:57,360
ACTIVITY.

6002
03:49:57,360 --> 03:50:00,040
FINDINGS CAN BE RELATED TO

6003
03:50:00,040 --> 03:50:02,520
LATINO CULTURE BUT COULD BE

6004
03:50:02,520 --> 03:50:07,720
RELATED TO BEING CHILDREN WITH

6005
03:50:07,720 --> 03:50:08,360
AUTISM, INTELLECTUAL

6006
03:50:08,360 --> 03:50:10,320
DISABILITIES, YOU KNOW, BECAUSE

6007
03:50:10,320 --> 03:50:12,760
WE DO FIND THAT MANY OF THE KIDS

6008
03:50:12,760 --> 03:50:14,720
WITH AUTISM DO HAVE

6009
03:50:14,720 --> 03:50:15,520
PARTICULAR -- SENSORY ISSUES

6010
03:50:15,520 --> 03:50:18,320
WHICH MAY RELATE TO EATING

6011
03:50:18,320 --> 03:50:19,960
CERTAIN FOODS, RIGHT, THAT MAY

6012
03:50:19,960 --> 03:50:23,600
NOT BE HEALTHY, IT MAY BE

6013
03:50:23,600 --> 03:50:24,720
PARENTS WHO TELL CHILDREN EAT

6014
03:50:24,720 --> 03:50:26,440
EVERYTHING ON YOUR PLATE AND

6015
03:50:26,440 --> 03:50:28,080
MAKE SURE THEY DO, MIGHT BE GOOD

6016
03:50:28,080 --> 03:50:32,240
FOR THEM BECAUSE MAYBE THEY ARE

6017
03:50:32,240 --> 03:50:33,640
GETTING MORE HEALTHY VARIETY.

6018
03:50:33,640 --> 03:50:35,040
MORE RESEARCH NEEDS TO BE DONE

6019
03:50:35,040 --> 03:50:36,280
ON THAT TOPIC.

6020
03:50:36,280 --> 03:50:38,360
WE DID RECRUIT A SMALL SAMPLE OF

6021
03:50:38,360 --> 03:50:41,080
WHITE CHILDREN IN THIS STUDY.

6022
03:50:41,080 --> 03:50:42,640
WITH SIMILAR PATTERN, WASN'T

6023
03:50:42,640 --> 03:50:43,720
DIFFERENT FROM LATINO KIDS IN

6024
03:50:43,720 --> 03:50:45,160
THIS FINDING.

6025
03:50:45,160 --> 03:50:48,760
IT MIGHT BE CHILDREN WITH AUTISM

6026
03:50:48,760 --> 03:50:57,560
AND IDD YOU NEED DIFFERENT

6027
03:50:57,560 --> 03:50:57,840
STRATEGIES.

6028
03:50:57,840 --> 03:51:00,240
NOW YOU WANT TO TALK ABOUT

6029
03:51:00,240 --> 03:51:01,000
CULTURALLY TAILORED

6030
03:51:01,000 --> 03:51:01,800
INTERVENTIONS, GATHERING DATA ON

6031
03:51:01,800 --> 03:51:03,320
WHAT ISSUES AND CHALLENGES ARE,

6032
03:51:03,320 --> 03:51:04,600
WHERE THE DISPARITIES ARE.

6033
03:51:04,600 --> 03:51:12,640
BUT HOW DO WE ADDRESS THEM?

6034
03:51:12,640 --> 03:51:13,720
NEXT SLIDE.

6035
03:51:13,720 --> 03:51:16,120
SO PEOPLE ARE PROBABLY FAMILIAR

6036
03:51:16,120 --> 03:51:21,920
WITH THE STUDY LED BY

6037
03:51:21,920 --> 03:51:23,120
STEINBRENNER AND COLLEAGUES,

6038
03:51:23,120 --> 03:51:25,520
THEY DID META-ANALYSIS TO FIND

6039
03:51:25,520 --> 03:51:27,960
OUT TO WHAT EXTENT AUTISM

6040
03:51:27,960 --> 03:51:32,000
INTERVENTION RESEARCH  RESEARCHS

6041
03:51:32,000 --> 03:51:35,880
PEOPLE OF COLOR AND LOWER

6042
03:51:35,880 --> 03:51:37,280
SOCIOECONOMIC STATUS AND FOUND

6043
03:51:37,280 --> 03:51:38,800
OUT OF 1,013 ARTICLES, 25%

6044
03:51:38,800 --> 03:51:41,240
REPORTED ANY DATA ON RACE AND

6045
03:51:41,240 --> 03:51:42,000
ETHNICITY.

6046
03:51:42,000 --> 03:51:43,480
TO ME THAT SAYS THAT THERE

6047
03:51:43,480 --> 03:51:46,680
PROBABLY ISN'T A LOT OF

6048
03:51:46,680 --> 03:51:48,320
DIVERSITY IN THE SAMPLE.

6049
03:51:48,320 --> 03:51:50,720
AND THEN THEY FOUND OVER TIME

6050
03:51:50,720 --> 03:51:51,640
THAT IT'S SLIGHTLY INCREASED,

6051
03:51:51,640 --> 03:51:52,680
NOT A LOT.

6052
03:51:52,680 --> 03:51:59,040
THE ONES THAT DID REPORT THOSE

6053
03:51:59,040 --> 03:52:02,960
25% THAT DID REPORT, 64%, 65%

6054
03:52:02,960 --> 03:52:06,360
WERE WHITE, 9.4 LATINO, 7.7

6055
03:52:06,360 --> 03:52:08,000
BLACK, 6.5 ASIAN.

6056
03:52:08,000 --> 03:52:10,440
IT DOESN'T QUITE MATCH A CENSUS

6057
03:52:10,440 --> 03:52:13,720
OF THE U.S. POPULATION.

6058
03:52:13,720 --> 03:52:15,040
EVEN THOSE 25%.

6059
03:52:15,040 --> 03:52:18,320
SO WE KNOW THAT PEOPLE OF COLOR

6060
03:52:18,320 --> 03:52:26,560
ARE NOT BEING INCLUDED IN

6061
03:52:26,560 --> 03:52:29,280
INTERVENTION RESEARCH FOR

6062
03:52:29,280 --> 03:52:29,600
AUTISM.

6063
03:52:29,600 --> 03:52:31,120
THINK ABOUT THE REASONS WHY

6064
03:52:31,120 --> 03:52:34,520
PEOPLE ARE UNDERREPRESENTED IN

6065
03:52:34,520 --> 03:52:35,080
AUTISM RESEARCH.

6066
03:52:35,080 --> 03:52:36,720
THERE COULD BE MISTRUST OF

6067
03:52:36,720 --> 03:52:38,440
HEALTH CARE PROVIDERS IN

6068
03:52:38,440 --> 03:52:38,960
RESEARCH.

6069
03:52:38,960 --> 03:52:41,200
RESEARCH MAY BE CONDUCTED IN

6070
03:52:41,200 --> 03:52:42,280
UNFAMILIAR SETTINGS LIKE

6071
03:52:42,280 --> 03:52:45,800
CLINICIAN ON THE UNIVERSITY

6072
03:52:45,800 --> 03:52:46,640
CAMPUS, FOR EXAMPLE.

6073
03:52:46,640 --> 03:52:55,640
SITES MAY BE FAR FROM THE BIPOC

6074
03:52:55,640 --> 03:52:55,920
COMMUNITIES.

6075
03:52:55,920 --> 03:52:59,880
FAMILIES MAY NOT BE ABLE TO TIME

6076
03:52:59,880 --> 03:53:04,160
OFF WORK MAYBE THEY DON'T HAVE

6077
03:53:04,160 --> 03:53:05,720
FAST AND RELIABLE INTERNET,

6078
03:53:05,720 --> 03:53:13,240
NON-ENGLISH SPEAKERS ARE OFTEN

6079
03:53:13,240 --> 03:53:15,880
EXCLUDED. 

6080
03:53:15,880 --> 03:53:23,000
A LOT OF STUDIES INCLUDE PEOPLE

6081
03:53:23,000 --> 03:53:24,160
WITH SOLID DIAGNOSIS OF AUTISM.

6082
03:53:24,160 --> 03:53:30,520
IF THEY ARE NOT YET DIAGNOSED,

6083
03:53:30,520 --> 03:53:34,560
AND WE KNOW THAT BIPOC

6084
03:53:34,560 --> 03:53:36,880
POPULATIONS ARE DIAGNOSED LATER,

6085
03:53:36,880 --> 03:53:44,840
SO THEY MAY BE EXCLUDED FOR THAT

6086
03:53:44,840 --> 03:53:45,320
REASON TOO.

6087
03:53:45,320 --> 03:53:51,000
I WANT TO POINT OUT THAT DOING

6088
03:53:51,000 --> 03:53:54,040
CULTURAL ADAPTATIONS IS MUCH

6089
03:53:54,040 --> 03:53:55,400
MORE WIDELY DONE IN MENTAL

6090
03:53:55,400 --> 03:53:57,440
HEALTH, IN THE MENTAL HEALTH

6091
03:53:57,440 --> 03:53:59,960
FIELD, LOOKING AT MENTAL HEALTH

6092
03:53:59,960 --> 03:54:01,840
INTERVENTIONS WITH CHILDREN AND

6093
03:54:01,840 --> 03:54:03,680
ADULTS, THERE'S A LOT MORE

6094
03:54:03,680 --> 03:54:05,680
RESEARCH ON THAT TO THE EXTENT

6095
03:54:05,680 --> 03:54:11,800
THEY CAN DO SEVERAL

6096
03:54:11,800 --> 03:54:13,240
META-ANALYSES ON CULTURAL

6097
03:54:13,240 --> 03:54:14,520
ADAPTATION.

6098
03:54:14,520 --> 03:54:16,520
THEY FOUND GREAT EFFECTS,

6099
03:54:16,520 --> 03:54:18,360
IMPORTANT EVIDENCE THAT SHOWS

6100
03:54:18,360 --> 03:54:19,920
CULTURAL ADAPTATIONS MAKE A

6101
03:54:19,920 --> 03:54:20,200
DIFFERENCE.

6102
03:54:20,200 --> 03:54:22,400
THEY FOUND MODERATE TO LARGE

6103
03:54:22,400 --> 03:54:24,280
EFFECTS FOR CULTURALLY ADAPTED

6104
03:54:24,280 --> 03:54:26,360
INTERVENTIONS, THOSE CONDUCTED

6105
03:54:26,360 --> 03:54:30,520
IN NATIVE LANGUAGE WERE TWICE AS

6106
03:54:30,520 --> 03:54:32,040
EFFECT AS ENGLISH, MANY PEOPLE

6107
03:54:32,040 --> 03:54:33,880
WHO MIGHT BE IMMIGRANT AND SPEAK

6108
03:54:33,880 --> 03:54:37,400
SOME ENGLISH MIGHT GET INCLUDED

6109
03:54:37,400 --> 03:54:38,120
IN AN ENGLISH-SPEAKING

6110
03:54:38,120 --> 03:54:39,800
INTERVENTION WHEN THEY WOULD

6111
03:54:39,800 --> 03:54:43,080
HAVE BEEN MORE COMFORTABLE IN

6112
03:54:43,080 --> 03:54:45,600
LANGUAGE OF ORIGIN.

6113
03:54:45,600 --> 03:54:48,200
INTERVENTIONS FOR SPECIFIC

6114
03:54:48,200 --> 03:54:49,640
GROUPS FOUR TIMES MORE LIKELY,

6115
03:54:49,640 --> 03:54:51,720
THAT'S ONE OF THE REASONS WE

6116
03:54:51,720 --> 03:54:54,360
WORKED WITH SARAH AND OTHERS TO

6117
03:54:54,360 --> 03:54:56,320
ADAPT PARENTS TAKING ACTION TO

6118
03:54:56,320 --> 03:54:57,600
BLACK FAMILIES SPECIFICALLY BUT

6119
03:54:57,600 --> 03:55:00,480
THEN ALSO DID A SEPARATE

6120
03:55:00,480 --> 03:55:02,120
ADAPTATION FOR CHINESE IMMIGRANT

6121
03:55:02,120 --> 03:55:05,400
FAMILIES, ANOTHER ONE FOR NAVAJO

6122
03:55:05,400 --> 03:55:08,560
FAMILIES, AND REALLY USING THE

6123
03:55:08,560 --> 03:55:10,080
STAKEHOLDERS TO MAKE ADAPTATIONS

6124
03:55:10,080 --> 03:55:20,480
THAT ARE IMPORTANT FOR

6125
03:55:23,560 --> 03:55:23,800
INTERVENTIONS.

6126
03:55:23,800 --> 03:55:26,960
IT IS ITERATIVE, IT'S NOT A ONE

6127
03:55:26,960 --> 03:55:28,280
AND DONE THING.

6128
03:55:28,280 --> 03:55:29,720
UPDATING THE INTERVENTION IS

6129
03:55:29,720 --> 03:55:40,240
CONTINUAL BASED ON FEEDBACK. 

6130
03:55:44,880 --> 03:55:46,600
WE'RE STILL CHANGING.

6131
03:55:46,600 --> 03:55:55,200
IT'S IMPORTANT TO INCLUDE STAKE

6132
03:55:55,200 --> 03:55:57,600
HOLDERS, FAMILIES AND ADVOCATES,

6133
03:55:57,600 --> 03:55:58,280
WHETHER IT'S EXISTING OR

6134
03:55:58,280 --> 03:56:00,800
CREATING A NEW ONE FOR THAT

6135
03:56:00,800 --> 03:56:02,120
COMMUNITY, MAKING THOSE CHANGES

6136
03:56:02,120 --> 03:56:05,280
OR MAKING THAT INTERVENTION

6137
03:56:05,280 --> 03:56:10,640
BASED ON STAKEHOLDER INPUT. 

6138
03:56:10,640 --> 03:56:12,720
DOING PILOT IMPLEMENTATION AND

6139
03:56:12,720 --> 03:56:22,720
MAKING TWEAKS AND UPDATING

6140
03:56:22,720 --> 03:56:23,120
INTERVENTION.

6141
03:56:23,120 --> 03:56:24,680
THERE'S SOME BEST PRACTICES THAT

6142
03:56:24,680 --> 03:56:28,040
WE'VE FOUND IN TERMS OF RESEARCH

6143
03:56:28,040 --> 03:56:29,600
BUT ALSO EXPERIENCE, WHEN YOU'RE

6144
03:56:29,600 --> 03:56:34,080
CULTURALLY DEVELOPING OR

6145
03:56:34,080 --> 03:56:36,040
ADAPTING OR EVALUATIONING

6146
03:56:36,040 --> 03:56:36,560
INTERVENTION.

6147
03:56:36,560 --> 03:56:39,560
INVOLVING STAKEHOLDERS IS SUPER

6148
03:56:39,560 --> 03:56:42,800
IMPORTANT EVERY TIME.

6149
03:56:42,800 --> 03:56:45,360
USING PEER-BASED METHODS,

6150
03:56:45,360 --> 03:56:48,840
WHETHER IT'S USING TO HELP

6151
03:56:48,840 --> 03:56:51,480
DELIVER INTERVENTION OR

6152
03:56:51,480 --> 03:56:53,880
RECRUITMENT OR ASPECTS, SUPER

6153
03:56:53,880 --> 03:56:55,280
IMPORTANT, CREATING AND

6154
03:56:55,280 --> 03:56:59,040
ADAPTING,  TRANSLATING MATERIAL,

6155
03:56:59,040 --> 03:57:03,000
ENSURING CONTENT IS RELEVANT, IF

6156
03:57:03,000 --> 03:57:06,760
YOU'RE ADAPTING SOMETHING,

6157
03:57:06,760 --> 03:57:07,600
YOU'RE NOT TALKING SOMETHING

6158
03:57:07,600 --> 03:57:10,600
THEY WOULDN'T BE ABLE TO RELATE

6159
03:57:10,600 --> 03:57:12,000
TO, ENSURING ACCESSIBILITY, AND

6160
03:57:12,000 --> 03:57:12,760
REDOING EFFORT.

6161
03:57:12,760 --> 03:57:23,240
MAKING SURE YOU'RE IN THOSE

6162
03:57:26,080 --> 03:57:26,800
NEIGHBORHOODS.

6163
03:57:26,800 --> 03:57:29,520
WE USE ECOLOGICAL VALIDITY

6164
03:57:29,520 --> 03:57:32,120
FRAMEWORK, IT DOES KIND OF FOCUS

6165
03:57:32,120 --> 03:57:33,000
YOU ON DIFFERENT DIMENSIONS THAT

6166
03:57:33,000 --> 03:57:37,280
YOU WANT TO THINK ABOUT, WHETHER

6167
03:57:37,280 --> 03:57:38,040
LANGUAGE, PERSONS, CONTEXT,

6168
03:57:38,040 --> 03:57:48,520
DIFFERENT THINGS YOU WANT TO

6169
03:57:48,840 --> 03:57:51,400
TAKE INTO ACCOUNT.

6170
03:57:51,400 --> 03:57:54,560
WE HAVE THE PODER STUDY,

6171
03:57:54,560 --> 03:57:56,720
INTERVIEWING PARENTS AND CHILD

6172
03:57:56,720 --> 03:57:59,480
DYADS, AND FROM THAT WE'RE

6173
03:57:59,480 --> 03:58:07,800
LEADING INTO PILOT INTERVENTION

6174
03:58:07,800 --> 03:58:12,520
THAT WILL DEVELOP FURTHER ALONG

6175
03:58:12,520 --> 03:58:16,560
THE GOAL IS TO PROMOTE HEALTH

6176
03:58:16,560 --> 03:58:18,560
AND WELL-BEING OF THE CHILDREN

6177
03:58:18,560 --> 03:58:22,480
WITH DISABILITIES BUT ALSO THEIR

6178
03:58:22,480 --> 03:58:23,360
MOTHERS AND FAMILY MEMBERS,

6179
03:58:23,360 --> 03:58:25,240
BECAUSE MOTHERS ARE OFTEN THE

6180
03:58:25,240 --> 03:58:28,880
PRIMARY CAREGIVER OR COULD BE A

6181
03:58:28,880 --> 03:58:30,160
GRANDMOTHER OR OTHER MEMBER OF

6182
03:58:30,160 --> 03:58:31,360
THE FAMILY THAT'S PRIMARY AND

6183
03:58:31,360 --> 03:58:32,800
OFTEN THEY ARE NOT FOCUSING ON

6184
03:58:32,800 --> 03:58:33,680
THEIR OWN HEALTH.

6185
03:58:33,680 --> 03:58:37,280
IT'S IMPORTANT TO ALSO PAY

6186
03:58:37,280 --> 03:58:42,400
ATTENTION TO THEM.

6187
03:58:42,400 --> 03:58:45,480
WE CREATED A TEN WEEK

6188
03:58:45,480 --> 03:58:48,000
CURRICULUM, TEN INDIVIDUAL

6189
03:58:48,000 --> 03:58:50,520
REMOTE SESSIONS, AND THEN WE

6190
03:58:50,520 --> 03:58:51,920
HAVE A MULTI-FAMILY GATHERING

6191
03:58:51,920 --> 03:58:53,680
THAT WILL TAKE PLACE WHEN WE

6192
03:58:53,680 --> 03:58:58,840
HAVE A GROUP OF FAMILIES WHO HAD

6193
03:58:58,840 --> 03:58:59,600
BEEN STARTING THE PROGRAM WHERE

6194
03:58:59,600 --> 03:59:02,880
THEY CAN SHARE EXPERIENCES AND

6195
03:59:02,880 --> 03:59:04,400
DO DEMONSTRATION PROJECTS AND

6196
03:59:04,400 --> 03:59:05,400
PHYSICAL ACTIVITY PROJECTS WITH

6197
03:59:05,400 --> 03:59:07,120
THE WHOLE FAMILY.

6198
03:59:07,120 --> 03:59:08,120
MULTI-FAMILY GROUP GATHERINGS

6199
03:59:08,120 --> 03:59:10,640
WILL BE NOT JUST CHILD AND

6200
03:59:10,640 --> 03:59:13,200
MOTHER BUT DADS, SIBLINGS,

6201
03:59:13,200 --> 03:59:23,680
WHOEVER ELSE WANTS TO COME.

6202
03:59:28,640 --> 03:59:32,200
WE'RE DOING PRE AND POST TESTS

6203
03:59:32,200 --> 03:59:34,200
CONDUCTED BY GRAD STUDENTS, AND

6204
03:59:34,200 --> 03:59:35,840
AFTER -- I WANT TO SAY THE

6205
03:59:35,840 --> 03:59:36,680
PEOPLE DELIVERING THE

6206
03:59:36,680 --> 03:59:37,800
INTERVENTION AS I MENTIONED

6207
03:59:37,800 --> 03:59:39,080
BEFORE, IT'S IMPORTANT TO USE

6208
03:59:39,080 --> 03:59:42,520
PEERS SO THEY ARE PARENTS OF

6209
03:59:42,520 --> 03:59:43,120
CHILDREN WITH DEVELOPMENTAL

6210
03:59:43,120 --> 03:59:52,880
DISABILITIES, AND THEY ARE DOING

6211
03:59:52,880 --> 04:00:03,240
REMOTE SESSIONS WITH

6212
04:00:11,480 --> 04:00:11,920
PARTICIPANTS.

6213
04:00:11,920 --> 04:00:14,520
I WANT TO TALK ABOUT THE WORK

6214
04:00:14,520 --> 04:00:24,960
FORCE, THAT WAS MENTIONED

6215
04:00:29,400 --> 04:00:30,400
EARLIER, WE NEED RESEARCHERS

6216
04:00:30,400 --> 04:00:34,360
FROM DIFFERENT BACKGROUNDS, ALSO

6217
04:00:34,360 --> 04:00:38,440
WHO ARE AUTISTIC AND HAVE

6218
04:00:38,440 --> 04:00:39,280
DIFFERENT LEVELS OF DISABILITY.

6219
04:00:39,280 --> 04:00:41,120
IT'S IMPORTANT TO HAVE VOICES AS

6220
04:00:41,120 --> 04:00:43,120
PART OF THE RESEARCH TEAM.

6221
04:00:43,120 --> 04:00:53,680
AND ONE OF THE THINGS I NOTICED,

6222
04:01:02,800 --> 04:01:04,680
I WANT TO SUGGEST NIH TAKE A

6223
04:01:04,680 --> 04:01:07,120
LOOK, I'M ON THE STUDY SECTION

6224
04:01:07,120 --> 04:01:09,960
AND DO READ A LOT OF GRANT

6225
04:01:09,960 --> 04:01:11,920
PROPOSALS, I SEE THAT OFTEN

6226
04:01:11,920 --> 04:01:14,080
THERE MIGHT BE A GROUP PROPOSING

6227
04:01:14,080 --> 04:01:16,480
TO DO A STUDY WITH RACIAL AND

6228
04:01:16,480 --> 04:01:18,040
ETHNIC MINORITY GROUPS BUT THEY

6229
04:01:18,040 --> 04:01:19,800
HAVE THE TEAM -- THE TEAM HAS NO

6230
04:01:19,800 --> 04:01:20,680
EXPERIENCE DOING THAT.

6231
04:01:20,680 --> 04:01:24,400
THERE'S NO RACIAL AND ETHNIC

6232
04:01:24,400 --> 04:01:27,120
DIVERSITY IN THE TEAM.

6233
04:01:27,120 --> 04:01:37,200
SO THINKING OF WAYS TO BRING

6234
04:01:37,200 --> 04:01:40,360
IN -- TO ENSURE PEOPLE TO HELP

6235
04:01:40,360 --> 04:01:41,560
WITH THAT WORKFORCE ISSUE.

6236
04:01:41,560 --> 04:01:44,720
THAT'S ALL I WANT TO SAY.

6237
04:01:44,720 --> 04:01:46,160
>>THANK YOU, DR. MAGAÑA.

6238
04:01:46,160 --> 04:01:47,960
THAT ISSUE HAS BEEN PROPERTY UP

6239
04:01:47,960 --> 04:01:49,880
TO NIH BEFORE, I WANT YOU TO

6240
04:01:49,880 --> 04:01:51,600
KNOW WE'VE BEEN TALKING ABOUT IT

6241
04:01:51,600 --> 04:02:02,000
AT THE LARGER NIH LEVEL.

6242
04:02:11,480 --> 04:02:17,440
NOW WE'LL HEAR FROM FOUR

6243
04:02:17,440 --> 04:02:20,200
ADVOCATES, FIRST A FELLOW AT THE

6244
04:02:20,200 --> 04:02:24,160
UMass BOSTON INSTITUTE FOR

6245
04:02:24,160 --> 04:02:32,880
COMMUNITY   INCLUSION.

6246
04:02:32,880 --> 04:02:35,720
NEXT , LYDIA BROWN.

6247
04:02:35,720 --> 04:02:37,360
WE HAVE MISS CAMILLE PROCTOR,

6248
04:02:37,360 --> 04:02:39,000
FOUNDER AND EXECUTIVE DIRECTOR

6249
04:02:39,000 --> 04:02:40,600
OF COLOR OF AUTISM FOUNDATION

6250
04:02:40,600 --> 04:02:43,400
AND MOTHER OF A CHILD ON THE

6251
04:02:43,400 --> 04:02:45,480
AUTISM SPECTRUM.

6252
04:02:45,480 --> 04:02:47,800
AND FINALLY DR. KRYSTAL

6253
04:02:47,800 --> 04:02:49,040
HERNANDEZ, IS EXECUTIVE DIRECTOR

6254
04:02:49,040 --> 04:02:51,080
OF THE TULSA CENTER FOR

6255
04:02:51,080 --> 04:02:52,960
BEHAVIORAL HEALTH AND MOTHER OF

6256
04:02:52,960 --> 04:02:54,680
CHILD ON THE AUTISM SPECTRUM.

6257
04:02:54,680 --> 04:03:05,240
WELCOME AND THANK YOU VERY MUCH

6258
04:03:06,840 --> 04:03:13,960
FOR BEING HERE.

6259
04:03:13,960 --> 04:03:17,000
>>OKAY.

6260
04:03:17,000 --> 04:03:21,880
GYASI BURKS-ABBOTT.

6261
04:03:21,880 --> 04:03:32,320
I'M A SELF-ADVOCATE FAMILY

6262
04:03:35,560 --> 04:03:35,720
MEMBER.

6263
04:03:35,720 --> 04:03:38,760
A LOT OF PROBLEMS ARE RELATED TO

6264
04:03:38,760 --> 04:03:40,880
THIS INVESTMENT IN GOVERNMENT

6265
04:03:40,880 --> 04:03:43,600
SERVICES WHICH HAS LEGACY OF

6266
04:03:43,600 --> 04:03:44,360
SYSTEMIC RACISM, FOR INSTANCE

6267
04:03:44,360 --> 04:03:47,200
SOME OF THE PROBLEMS THAT WE

6268
04:03:47,200 --> 04:03:50,200
HAVE LIKE WITH THE SSI ASSET

6269
04:03:50,200 --> 04:03:53,680
LIMITS THAT HAVEN'T BEEN UPDATED

6270
04:03:53,680 --> 04:03:55,240
SINCE 1989, IT'S LIKE $2,000 IN

6271
04:03:55,240 --> 04:03:57,640
YOUR ACCOUNT, WHICH I PERSONALLY

6272
04:03:57,640 --> 04:03:58,680
HAVE SUFFERED FROM.

6273
04:03:58,680 --> 04:03:59,800
I'VE ALWAYS BEEN IN THE POSITION

6274
04:03:59,800 --> 04:04:02,000
OF NOT BEING ABLE TO MAKE ENOUGH

6275
04:04:02,000 --> 04:04:04,640
MONEY TO BE SELF-SUPPORTING BUT

6276
04:04:04,640 --> 04:04:07,880
MAKING JUST ENOUGH TO JEOPARDIZE

6277
04:04:07,880 --> 04:04:09,440
MY BENEFITS, WORKFORCE CRISIS

6278
04:04:09,440 --> 04:04:11,160
WHICH WAS EXACERBATED BY THE

6279
04:04:11,160 --> 04:04:12,880
PANDEMIC, BUT WHICH IS ALSO

6280
04:04:12,880 --> 04:04:17,680
DRIVEN BY THE LOW WAGES THAT DPS

6281
04:04:17,680 --> 04:04:18,120
PROFESSIONALS GET.

6282
04:04:18,120 --> 04:04:23,600
AND OF COURSE TWENTY YEARS AFTER

6283
04:04:23,600 --> 04:04:32,240
THE SUPREME COURT  OLMSTEAD

6284
04:04:32,240 --> 04:04:33,440
DECISION.

6285
04:04:33,440 --> 04:04:38,440
BASICALLY THE REASON FOR THE

6286
04:04:38,440 --> 04:04:46,720
WAITLIST IS BECAUSE OF THE

6287
04:04:46,720 --> 04:04:50,760
DISINVESTMENT IN GOVERNMENT

6288
04:04:50,760 --> 04:04:51,000
SERVICES.

6289
04:04:51,000 --> 04:04:56,000
ONE REASON WE DON'T HAVE

6290
04:04:56,000 --> 04:05:01,640
UNIVERSAL HEALTH CARE IS

6291
04:05:01,640 --> 04:05:04,120
BECAUSE IN THE 40s PRESIDENT

6292
04:05:04,120 --> 04:05:05,880
TRUMAN PROPOSED A PLAN, SCUTTLED

6293
04:05:05,880 --> 04:05:06,960
BECAUSE SENATORS FROM SOUTHERN

6294
04:05:06,960 --> 04:05:07,880
STATES WORRIED ABOUT THAT

6295
04:05:07,880 --> 04:05:15,640
UNIVERSAL HEALTH CARE WOULD LEAD

6296
04:05:15,640 --> 04:05:18,480
TO INTEGRATION OF HOSPITALS.

6297
04:05:18,480 --> 04:05:20,920
AN ECONOMIST TALKS ABOUT WHAT

6298
04:05:20,920 --> 04:05:22,000
HAPPENED IN RESPONSE TO CIVIL

6299
04:05:22,000 --> 04:05:29,560
RIGHTS MOVEMENT IN THE SOUTH

6300
04:05:29,560 --> 04:05:30,600
PUBLIC SWIMMING POOLS WERE SHUT

6301
04:05:30,600 --> 04:05:33,480
DOWN AND DRAINED SO NO ONE HAD

6302
04:05:33,480 --> 04:05:35,320
THE PUBLIC BENEFIT AND SIMILAR

6303
04:05:35,320 --> 04:05:43,720
PROCESS HAPPENED ON THE FEDERAL

6304
04:05:43,720 --> 04:05:46,920
LEVEL, IT WAS NO LONGER TO TALK

6305
04:05:46,920 --> 04:05:54,040
ABOUT OVERT RACISM BECAUSE OF

6306
04:05:54,040 --> 04:05:55,360
CIVIL RIGHTS MOVEMENT.

6307
04:05:55,360 --> 04:05:57,400
AS PEOPLE OF COLOR GOT ACCESS TO

6308
04:05:57,400 --> 04:06:01,040
SERVICES AND BENEFITS THEY WERE

6309
04:06:01,040 --> 04:06:07,040
IN ESSENCE DRAINED, EVEN WHEN

6310
04:06:07,040 --> 04:06:08,960
RACE IS NOT SPECIFICALLY

6311
04:06:08,960 --> 04:06:09,560
INVOLVED, THE SIMPLE QUESTION

6312
04:06:09,560 --> 04:06:14,200
HOW MUCH WILL THIS COST IS

6313
04:06:14,200 --> 04:06:15,160
COMPLICATED BY ASSUMPTIONS OR

6314
04:06:15,160 --> 04:06:18,880
JUDGMENT WHO IS WORTHY OR NOT

6315
04:06:18,880 --> 04:06:19,480
WORTHY, LIKE WHEN PRESIDENT

6316
04:06:19,480 --> 04:06:21,920
BIDEN WENT TO DO THE AMERICAN

6317
04:06:21,920 --> 04:06:23,000
JOBS PLAN, WANTED INFRASTRUCTURE

6318
04:06:23,000 --> 04:06:25,480
TO INCLUDE NOT JUST ROADS AND

6319
04:06:25,480 --> 04:06:29,560
BRIDGES BUT ALSO HUMAN

6320
04:06:29,560 --> 04:06:32,720
INFRASTRUCTURE, DIRECT SERVICE

6321
04:06:32,720 --> 04:06:36,400
PROFESSIONALS, PAID MEDICAL

6322
04:06:36,400 --> 04:06:37,160
LEAVE, FROM REPUBLICANS AND

6323
04:06:37,160 --> 04:06:39,280
DEMOCRATS SAYING THAT'S A WASTE

6324
04:06:39,280 --> 04:06:41,520
OF MONEY, STICK WITH ROADS AND

6325
04:06:41,520 --> 04:06:42,640
BUSINESSES, DON'T WORRY ABOUT

6326
04:06:42,640 --> 04:06:44,640
THE PEOPLE WHO USE THOSE ROADS

6327
04:06:44,640 --> 04:06:46,160
AND BRIDGES.

6328
04:06:46,160 --> 04:06:48,040
IT'S INTERESTING HOW THAT'S

6329
04:06:48,040 --> 04:06:49,320
CONSIDERED SOCIAL SERVICES ARE

6330
04:06:49,320 --> 04:06:51,880
OFTEN SEEN AS A WASTE OF MONDAY

6331
04:06:51,880 --> 04:06:53,280
BUT FOR INSTANCE NOT DEFENSE OR

6332
04:06:53,280 --> 04:06:58,200
TAX CUTS FOR THE RICH.

6333
04:06:58,200 --> 04:07:00,360
AND I THINK MOVING FORWARD WE

6334
04:07:00,360 --> 04:07:02,720
NEED TO MOVE AWAY FROM

6335
04:07:02,720 --> 04:07:04,560
TRICKLEDOWN ECONOMICS TO AN

6336
04:07:04,560 --> 04:07:06,960
ECONOMICS OF LIFTING UP.

6337
04:07:06,960 --> 04:07:08,480
OR AS HEATHER McGEE TALKS

6338
04:07:08,480 --> 04:07:12,120
ABOUT, WE NEED TO MOVE AWAY FROM

6339
04:07:12,120 --> 04:07:15,160
WHAT SHE CALLED ZERO SUM

6340
04:07:15,160 --> 04:07:16,840
THINKING THAT GIVING TO ONE

6341
04:07:16,840 --> 04:07:20,080
GROUP TAKES AWAY FROM ANOTHER

6342
04:07:20,080 --> 04:07:23,280
GROUP, AND WE NEED TO THINK IN

6343
04:07:23,280 --> 04:07:25,080
TERMS OF SOLIDARITY DIVIDENDS

6344
04:07:25,080 --> 04:07:29,640
WHERE WE BENEFIT WHEN WE 

6345
04:07:29,640 --> 04:07:32,760
CONTRIBUTE TO EACH OTHER'S

6346
04:07:32,760 --> 04:07:42,960
WELFARE. 

6347
04:07:46,840 --> 04:07:48,200
THANKS FOR LISTENING.

6348
04:07:48,200 --> 04:07:50,520
>>I'M CAMILLE PROCTOR,

6349
04:07:50,520 --> 04:07:54,120
EXECUTIVE DIRECTOR OF COLOR OF

6350
04:07:54,120 --> 04:07:54,960
AUTISM FOUNDATION.

6351
04:07:54,960 --> 04:08:00,560
AND I GUESS I WOULD HAVE TO

6352
04:08:00,560 --> 04:08:05,400
DOVETAIL OFF OF WHAT DR. LOCKE

6353
04:08:05,400 --> 04:08:09,680
AND DR. BOYD SPOKE ABOUT.

6354
04:08:09,680 --> 04:08:13,920
THERE IS A DISPARITY STILL WHILE

6355
04:08:13,920 --> 04:08:15,400
DIAGNOSIS ARE, MORE CHILDREN ARE

6356
04:08:15,400 --> 04:08:19,640
BEING DIAGNOSED, THAT'S A GOOD

6357
04:08:19,640 --> 04:08:21,480
THING, BUT DISPARITIES STILL

6358
04:08:21,480 --> 04:08:22,040
EXIST.

6359
04:08:22,040 --> 04:08:23,040
PERHAPS MORE AFRICAN AMERICANS

6360
04:08:23,040 --> 04:08:24,880
OR BLACK PEOPLE KNOW ABOUT

6361
04:08:24,880 --> 04:08:34,200
AUTISM BUT ARE THEY TAKING

6362
04:08:34,200 --> 04:08:34,600
ACTION?

6363
04:08:34,600 --> 04:08:38,120
WHEN WE LOOK AT CERTAIN AREAS OF

6364
04:08:38,120 --> 04:08:39,760
THE COUNTRY, IN ATLANTA THERE'S

6365
04:08:39,760 --> 04:08:42,840
A BLACK COMMUNITY CALLED

6366
04:08:42,840 --> 04:08:44,160
CASCADES, PRIMARILY A MIDDLE

6367
04:08:44,160 --> 04:08:46,880
CLASS, UPPER MIDDLE CLASS BLACK

6368
04:08:46,880 --> 04:08:47,160
COMMUNITY.

6369
04:08:47,160 --> 04:08:50,240
IN THAT COMMUNITY THERE ARE NO

6370
04:08:50,240 --> 04:08:50,920
SERVICE PROVIDERS.

6371
04:08:50,920 --> 04:08:52,880
AND SO THOSE FAMILIES HAVE TO

6372
04:08:52,880 --> 04:08:57,840
DRIVE BETWEEN 30 TO EVEN UP TO 2

6373
04:08:57,840 --> 04:08:59,120
HOURS TO GET THE SERVICES THAT

6374
04:08:59,120 --> 04:08:59,560
THEY NEED.

6375
04:08:59,560 --> 04:09:03,160
AND I THINK THAT WE DO NEED TO

6376
04:09:03,160 --> 04:09:05,360
TAKE ACTION IN REGARDS TO

6377
04:09:05,360 --> 04:09:08,560
CREATING EQUITABLE OUTCOMES FOR

6378
04:09:08,560 --> 04:09:09,960
ALL.

6379
04:09:09,960 --> 04:09:12,480
WHETHER IT BE EARLY

6380
04:09:12,480 --> 04:09:13,760
INTERVENTION, WHETHER IT BE

6381
04:09:13,760 --> 04:09:16,120
JOBS, THERE NEEDS TO BE SOME

6382
04:09:16,120 --> 04:09:18,760
EQUITY GIVEN TO THESE

6383
04:09:18,760 --> 04:09:19,560
COMMUNITIES OF COLOR.

6384
04:09:19,560 --> 04:09:22,240
I DON'T HAVE AN AWFUL LOT TO SAY

6385
04:09:22,240 --> 04:09:24,400
TODAY BECAUSE I THINK DR. BOYD

6386
04:09:24,400 --> 04:09:27,200
AND DR. LOCKE COVERED WHAT I WAS

6387
04:09:27,200 --> 04:09:27,480
THINKING.

6388
04:09:27,480 --> 04:09:38,000
I WILL LET SOMEONE ELSE SPEAK

6389
04:09:48,240 --> 04:09:48,360
NOW.

6390
04:09:48,360 --> 04:09:50,600
>>I'M LYDIA BROWN,
WEARING A

6391
04:09:50,600 --> 04:09:54,080
LIGHT TAN SUIT JACKET, MY PIN

6392
04:09:54,080 --> 04:09:56,480
SAYS THERE'S NO WRONG WAY TO

6393
04:09:56,480 --> 04:09:59,000
HAVE A BODY, BEHIND ME IS A FAKE

6394
04:09:59,000 --> 04:10:00,200
BACKGROUND FROM A WALL FROM

6395
04:10:00,200 --> 04:10:03,400
FLOOR TO CEILING OF BOOKS AND

6396
04:10:03,400 --> 04:10:04,800
BOOKSHELVES, AND IT'S KIND OF A

6397
04:10:04,800 --> 04:10:06,560
DREAMY WALL THAT I WISH I

6398
04:10:06,560 --> 04:10:07,080
ACTUALLY HAD.

6399
04:10:07,080 --> 04:10:09,720
IF ANY OF YOU HAVE SUCH A WALL,

6400
04:10:09,720 --> 04:10:11,400
I WOULD BE INCREDIBLY ENVIOUS.

6401
04:10:11,400 --> 04:10:13,480
THANK YOU FOR THE OPPORTUNITY TO

6402
04:10:13,480 --> 04:10:15,640
JOIN YOU HERE AND TO SPEAK TO

6403
04:10:15,640 --> 04:10:19,120
SOME OF THE ISSUES THAT AUTISTIC

6404
04:10:19,120 --> 04:10:20,480
PEOPLE OF COLOR EXPERIENCE

6405
04:10:20,480 --> 04:10:22,560
INDIVIDUALLY AND RESULT OF

6406
04:10:22,560 --> 04:10:26,040
SYSTEMATIC RACISM AND ABLEISM

6407
04:10:26,040 --> 04:10:28,240
IMPACTING OUR LIVES.

6408
04:10:28,240 --> 04:10:30,640
AS FOUNDING DIRECTOR OF THE FUND

6409
04:10:30,640 --> 04:10:32,480
I HAVE EXPERIENCED COUNTLESS

6410
04:10:32,480 --> 04:10:34,440
STORIES FROM HUNDREDS IF NOT

6411
04:10:34,440 --> 04:10:36,000
THOUSANDS OF AUTISTIC PEOPLE OF

6412
04:10:36,000 --> 04:10:38,720
COLOR FROM MANY DIFFERENT

6413
04:10:38,720 --> 04:10:40,360
BACKGROUNDS, MANY SPECIFIC

6414
04:10:40,360 --> 04:10:43,240
COMMUNITIES, WHO EXPERIENCE THE

6415
04:10:43,240 --> 04:10:45,400
IMPACT OF LIFELONG ECONOMIC

6416
04:10:45,400 --> 04:10:46,720
RACIAL AND DISABILITY-BASED

6417
04:10:46,720 --> 04:10:47,160
DISPARITIES.

6418
04:10:47,160 --> 04:10:50,640
WE KNOW ACCORDING TO THE BUREAU

6419
04:10:50,640 --> 04:10:52,720
OF LABOR STATISTICS AND OTHER

6420
04:10:52,720 --> 04:10:53,840
STATISTICS COLLECTED ON

6421
04:10:53,840 --> 04:10:57,320
EMPLOYMENT OUTCOMES FOR DISABLED

6422
04:10:57,320 --> 04:10:59,400
PEOPLE, THAT AUTISTIC PEOPLE AND

6423
04:10:59,400 --> 04:10:59,960
BROADER DISABILITY COMMUNITY

6424
04:10:59,960 --> 04:11:02,160
FACE HIGHER RATES OF

6425
04:11:02,160 --> 04:11:04,000
UNEMPLOYMENT AND POVERTY,

6426
04:11:04,000 --> 04:11:05,760
COMPARED TO THE POPULATION IN

6427
04:11:05,760 --> 04:11:06,000
GENERAL.

6428
04:11:06,000 --> 04:11:08,600
WE ALSO KNOW AUTISTIC PEOPLE OF

6429
04:11:08,600 --> 04:11:13,400
COLOR LIKE DISABLED PEOPLE OF

6430
04:11:13,400 --> 04:11:15,480
COLOR MORE GENERALLY FACE

6431
04:11:15,480 --> 04:11:16,360
SHARPER DISPARITIES.

6432
04:11:16,360 --> 04:11:17,520
EARNINGS THRESHOLD IS EXPECTED

6433
04:11:17,520 --> 04:11:20,440
TO BE LOWER IN TERMS OF ACTUAL

6434
04:11:20,440 --> 04:11:21,840
WAGES AND LIFETIME EARNINGS,

6435
04:11:21,840 --> 04:11:23,280
COMPARED TO PEOPLE WITHOUT

6436
04:11:23,280 --> 04:11:24,360
DISABILITIES, AND FOR AUTISTIC

6437
04:11:24,360 --> 04:11:26,960
PEOPLE OF COLOR THERE'S

6438
04:11:26,960 --> 04:11:32,240
DISPARITIES THAT ARE FURTHER

6439
04:11:32,240 --> 04:11:33,600
EXACERBATE.

6440
04:11:33,600 --> 04:11:35,880
IN REAL TERMS WE ENCOUNTER

6441
04:11:35,880 --> 04:11:37,760
STORIES WITH INABILITY TO MEET

6442
04:11:37,760 --> 04:11:39,720
RENT PAYMENT OBLIGATIONS AS WELL

6443
04:11:39,720 --> 04:11:40,800
AS MAKE UTILITIES PAYMENTS, AND

6444
04:11:40,800 --> 04:11:43,360
AS A RESULT ARE SCRAMBLING FROM

6445
04:11:43,360 --> 04:11:45,960
MONTH TO MONTH DESPERATELY

6446
04:11:45,960 --> 04:11:48,040
ATTEMPTING TO GRAB TOGETHER

6447
04:11:48,040 --> 04:11:49,480
RESOURCES TO ATTEMPT TO POOL

6448
04:11:49,480 --> 04:11:52,960
ENOUGH MONEY TO STAVE OFFER THE

6449
04:11:52,960 --> 04:11:53,440
POTENTIAL EVICTION AND

6450
04:11:53,440 --> 04:11:53,880
HOMELESSNESS.

6451
04:11:53,880 --> 04:11:55,120
THERE ARE MANY AUTISTIC PEOPLE

6452
04:11:55,120 --> 04:11:57,000
OF COLOR WHO RECEIVE GRANTS FROM

6453
04:11:57,000 --> 04:11:58,880
THE AUTISTIC PEOPLE OF COLOR

6454
04:11:58,880 --> 04:12:01,400
FUND, WHO FACED CHRONIC

6455
04:12:01,400 --> 04:12:02,280
HOMELESSNESS, MULTIPLE

6456
04:12:02,280 --> 04:12:05,200
EVICTIONS, AND LIVER IN A

6457
04:12:05,200 --> 04:12:12,560
STATE -- LIVE IN A STATE OF

6458
04:12:12,560 --> 04:12:15,640
ECONOMIC INSTABILITY. 

6459
04:12:15,640 --> 04:12:22,520
AS WELL AS DETERMINATIONS OF

6460
04:12:22,520 --> 04:12:23,200
COMPENSATION, RAISING,

6461
04:12:23,200 --> 04:12:24,680
PROMOTIONS, REGARDING

6462
04:12:24,680 --> 04:12:25,600
DISCRIMINATION IN REGARD TO

6463
04:12:25,600 --> 04:12:27,160
ACCESSING PROGRAMS TO FORM

6464
04:12:27,160 --> 04:12:29,120
SOCIAL SAFETY NET FOR PEOPLE

6465
04:12:29,120 --> 04:12:30,720
WITH DISABILITIES AND LOW AND

6466
04:12:30,720 --> 04:12:32,360
MODERATE INCOME.

6467
04:12:32,360 --> 04:12:33,360
MANY AUTISTIC PEOPLE OF COLOR

6468
04:12:33,360 --> 04:12:39,880
ARE PLACED IN A SITUATION WHERE

6469
04:12:39,880 --> 04:12:41,360
THEY ARE UNABLE TO MAINTAIN

6470
04:12:41,360 --> 04:12:44,640
ACCESS TO SUPPORTS THEY NEED TO

6471
04:12:44,640 --> 04:12:45,400
MAINTAIN INDEPENDENTS AND

6472
04:12:45,400 --> 04:12:46,200
CONNECTION TO THE COMMUNITY AS

6473
04:12:46,200 --> 04:12:50,000
WELL AS TO BE ABLE TO ACCESS

6474
04:12:50,000 --> 04:12:51,080
SUPPORT ECONOMICALLY NECESSARY

6475
04:12:51,080 --> 04:12:53,160
TO LIVE A MINIMALLY DECENT

6476
04:12:53,160 --> 04:12:54,360
QUALITY OF LIFE.

6477
04:12:54,360 --> 04:12:56,480
THIS IS BEFORE REACHING

6478
04:12:56,480 --> 04:12:57,760
DISPARITIES AND DIAGNOSE

6479
04:12:57,760 --> 04:13:04,760
IDENTIFICATION  A- DIAGNOSIS

6480
04:13:04,760 --> 04:13:05,640
ASSESSMENT.

6481
04:13:05,640 --> 04:13:07,720
IT IS NOT LOST ON ME THAT THOSE

6482
04:13:07,720 --> 04:13:10,160
OF US WHO HAVE CREATE AND LEAD

6483
04:13:10,160 --> 04:13:11,760
AUTISTIC PEOPLE OF COLOR FUN'S

6484
04:13:11,760 --> 04:13:13,520
WORK ARE AMONG THE MORE

6485
04:13:13,520 --> 04:13:17,240
PRIVILEGED IN THE COMMUNITY IF

6486
04:13:17,240 --> 04:13:18,680
ONLY RELATIVELY AND PRECARIOUSLY

6487
04:13:18,680 --> 04:13:19,240
SO.

6488
04:13:19,240 --> 04:13:21,200
BECAUSE WE HAVE ACCESS TO

6489
04:13:21,200 --> 04:13:22,640
COMMUNITY SUPPORT, BECAUSE WE

6490
04:13:22,640 --> 04:13:24,000
CURRENTLY HAVE ACCESS TO

6491
04:13:24,000 --> 04:13:25,040
EMPLOYMENT, AND BECAUSE WE

6492
04:13:25,040 --> 04:13:27,360
CURRENTLY HAVE ACCESS TO

6493
04:13:27,360 --> 04:13:27,800
HOUSING.

6494
04:13:27,800 --> 04:13:29,760
THAT'S NOT TRUE FOR SIGNIFICANT

6495
04:13:29,760 --> 04:13:31,280
PROPORTION OF AUTISTIC PEOPLE OF

6496
04:13:31,280 --> 04:13:33,800
COLOR WHO RECEIVE MICRO GRANT

6497
04:13:33,800 --> 04:13:34,760
SUPPORT FROM THE ORGANIZATION.

6498
04:13:34,760 --> 04:13:36,120
FOR A RANGE OF REASONS AUTISTIC

6499
04:13:36,120 --> 04:13:38,920
PEOPLE OF COLOR WHO COME FROM

6500
04:13:38,920 --> 04:13:40,720
THE MINORITIZED RELIGIOUS

6501
04:13:40,720 --> 04:13:41,760
COMMUNITIES, MINORITIED ETHNIC

6502
04:13:41,760 --> 04:13:44,320
COMMUNITIES, AND WHO ARE

6503
04:13:44,320 --> 04:13:45,520
MULTI-RACIAL AND MULTI-ETHNIC

6504
04:13:45,520 --> 04:13:47,920
THEMSELVES, FACE A MULTITUDE OF

6505
04:13:47,920 --> 04:13:48,360
FORMS OF SYSTEMATIC

6506
04:13:48,360 --> 04:13:50,120
DISCRIMINATION THAT LEAD TO POOR

6507
04:13:50,120 --> 04:14:00,640
OUTCOMES IN SHORT TERM AND LONG

6508
04:14:07,800 --> 04:14:09,200
TERM, FACING HIGHER RATES OF

6509
04:14:09,200 --> 04:14:12,720
SCHOOL PUSHOUT ON THE JOB

6510
04:14:12,720 --> 04:14:13,400
DISCRIMINATION, HOUSING

6511
04:14:13,400 --> 04:14:14,000
DISCRIMINATION, DISCRIMINATION

6512
04:14:14,000 --> 04:14:16,560
IN CREDIT AND LENDING DECISIONS

6513
04:14:16,560 --> 04:14:18,680
AND ABILITY TO MAINTAIN ACCESS

6514
04:14:18,680 --> 04:14:19,880
TO COMMUNITY INTEGRATION AS WELL

6515
04:14:19,880 --> 04:14:23,240
AS TO LIVE A LIFE FREE OF

6516
04:14:23,240 --> 04:14:24,200
CRIMINALIZATION AND PROFILING.

6517
04:14:24,200 --> 04:14:25,120
I THINK ABOUT THE EXPERIENCES

6518
04:14:25,120 --> 04:14:27,840
THAT MANY OF US HAVE SHARED IN

6519
04:14:27,840 --> 04:14:31,160
OUR OWN COMMUNITY CONVERSATIONS,

6520
04:14:31,160 --> 04:14:41,720
HOW IT IS UNFORTUNATELY A COMMON

6521
04:14:43,040 --> 04:14:45,360
EXPERIENCE SIMPLY FOR EXPERIENCE

6522
04:14:45,360 --> 04:14:47,440
OF LIVING A AUTISTIC AT THE SAME

6523
04:14:47,440 --> 04:14:48,080
TIME.

6524
04:14:48,080 --> 04:14:49,640
I THINK ABOUT THE EXPERIENCES OF

6525
04:14:49,640 --> 04:14:51,160
AUTISTIC PEOPLE OF COLOR, WHO

6526
04:14:51,160 --> 04:14:53,680
BELONG TO THE LGBTQ COMMUNITY AS

6527
04:14:53,680 --> 04:14:54,120
WELL.

6528
04:14:54,120 --> 04:14:57,960
HOW OUR RIGHTS AND ABILITY TO

6529
04:14:57,960 --> 04:14:59,160
EXERCISE AUTONOMY ARE UNDER

6530
04:14:59,160 --> 04:15:02,320
DIRECT ATTACK IN DOZEN STATES

6531
04:15:02,320 --> 04:15:04,440
AND WITHOUT THE ABILITY TO RELY

6532
04:15:04,440 --> 04:15:06,240
ABLE ACCESS NOT ONLY GENDER

6533
04:15:06,240 --> 04:15:09,680
CONFIRMING CARE BUT EVEN

6534
04:15:09,680 --> 04:15:10,880
CULTURALLY RESPONSIVE SUPPORT

6535
04:15:10,880 --> 04:15:11,760
WITHIN DISABILITY SERVICES

6536
04:15:11,760 --> 04:15:14,360
PROVIDER LEADS MANY PEOPLE OF

6537
04:15:14,360 --> 04:15:17,000
COLOR, QUEER AND TRANS, IN

6538
04:15:17,000 --> 04:15:20,160
PARTICULAR, IN A HARD PLACE TO

6539
04:15:20,160 --> 04:15:22,160
CHOOSE BETWEEN LOSING ACCESS TO

6540
04:15:22,160 --> 04:15:23,000
SERVICES TO SURVIVE AND

6541
04:15:23,000 --> 04:15:25,200
PARTICIPATE IN COMMUNITIES OR TO

6542
04:15:25,200 --> 04:15:26,960
BE IN BASICALLY RESPECTED AND

6543
04:15:26,960 --> 04:15:37,440
TREATED WITH CARE AND SUPPORT.

6544
04:15:46,040 --> 04:15:48,280
IT SHOULD NOT BE THE CASE WE'RE

6545
04:15:48,280 --> 04:15:53,760
WORRIED ABOUT LONG-TERM MENTAL

6546
04:15:53,760 --> 04:15:54,880
AND PHYSICAL HEALTH IMPACTS.

6547
04:15:54,880 --> 04:15:56,480
IT SHOULD NOT BE THE CASE WE'RE

6548
04:15:56,480 --> 04:15:58,760
WORRIED ABOUT ABILITY TO AC SIS

6549
04:15:58,760 --> 04:16:01,080
DIGNITY AND END OF LIKE CARE AND

6550
04:16:01,080 --> 04:16:02,520
AFTER DEATH, SHOULD NOT BE THE

6551
04:16:02,520 --> 04:16:13,040
CASE WE'RE WORRIED ABOUT HAVING

6552
04:16:32,440 --> 04:16:35,240
A LIFESPAN CUT SHORT.

6553
04:16:35,240 --> 04:16:37,320
THAT IS THE FINANCIAL IMPACT ON

6554
04:16:37,320 --> 04:16:38,600
AUTISTIC PEOPLE OF COLOR AND

6555
04:16:38,600 --> 04:16:40,160
OTHER DISABLED PEOPLE OF COLOR

6556
04:16:40,160 --> 04:16:42,240
IN GENERAL, WHO ALSO SERVE AS

6557
04:16:42,240 --> 04:16:44,120
FAMILY CAREGIVERS WITHIN OUR OWN

6558
04:16:44,120 --> 04:16:44,560
FAMILIES.

6559
04:16:44,560 --> 04:16:46,760
I AM MYSELF A FAMILY CAREGIVER

6560
04:16:46,760 --> 04:16:48,280
WHO IS AUTISTIC AND RESPONSIBLE

6561
04:16:48,280 --> 04:16:49,720
FOR PROVIDING CARE AND SUPPORT

6562
04:16:49,720 --> 04:16:51,360
TO OTHER FAMILY MEMBERS WITH

6563
04:16:51,360 --> 04:16:53,640
DISABILITIES, AND THIS IS NOT AN

6564
04:16:53,640 --> 04:16:55,720
UNUSUAL SITUATION.

6565
04:16:55,720 --> 04:16:57,320
WHETHER AS PARENTS, SIBLINGS,

6566
04:16:57,320 --> 04:16:58,760
SPOUSES OR OTHER FAMILIAL

6567
04:16:58,760 --> 04:17:00,440
CAREGIVERS THOSE IN COMMUNITIES

6568
04:17:00,440 --> 04:17:02,760
OF COLOR WHO ARE ALSO AUTISTIC

6569
04:17:02,760 --> 04:17:04,920
OR OTHERWISE DISABLED WILL

6570
04:17:04,920 --> 04:17:06,120
EXPERIENCE SIGNIFICANTLY

6571
04:17:06,120 --> 04:17:07,360
DIMINISHED CAPACITY FROM OUR

6572
04:17:07,360 --> 04:17:09,400
EARNINGS, AND ABILITY TO BUILD

6573
04:17:09,400 --> 04:17:11,200
INCOME AND ASSETS, MAINTAIN AX

6574
04:17:11,200 --> 04:17:13,800
SAYS TO ASSETS BECAUSE OF OUR

6575
04:17:13,800 --> 04:17:14,880
CARE AND RESPONSIBILITIES THAT

6576
04:17:14,880 --> 04:17:18,480
WE HAVE WITHIN OUR FAMILIES.

6577
04:17:18,480 --> 04:17:19,680
WE FACE ADDITIONAL STRESSORS,

6578
04:17:19,680 --> 04:17:21,920
LACK OF SUPPORT AND

6579
04:17:21,920 --> 04:17:23,160
UNDERSTANDING, AND WE FACE

6580
04:17:23,160 --> 04:17:25,080
DISCRIMINATION IN THE CHILD AND

6581
04:17:25,080 --> 04:17:26,600
FAMILY REGULATORY SYSTEMS IN

6582
04:17:26,600 --> 04:17:28,680
COURT AND IN FOSTER SERVICES AND

6583
04:17:28,680 --> 04:17:30,320
IN PARENTAL SUPPORT AGENCIES.

6584
04:17:30,320 --> 04:17:32,080
AS WELL AS PROGRAMS THAT ARE

6585
04:17:32,080 --> 04:17:33,240
INTENDED TO SUPPORT FAMILIES IN

6586
04:17:33,240 --> 04:17:38,360
WHICH ONE OR MORE PEOPLE ARE

6587
04:17:38,360 --> 04:17:39,800
AUTISTIC.

6588
04:17:39,800 --> 04:17:41,000
WE SIMULTANEOUSLY FACE

6589
04:17:41,000 --> 04:17:42,440
CONSISTENT REMOVAL FROM PUBLIC

6590
04:17:42,440 --> 04:17:43,440
DISCOURSE AND CONVERSATION WHEN

6591
04:17:43,440 --> 04:17:44,760
CONSIDERING WHAT TYPES OF

6592
04:17:44,760 --> 04:17:45,720
SUPPORT AUTISTIC PEOPLE NEED AND

6593
04:17:45,720 --> 04:17:47,960
THE FACT THAT MANY OF US ARE

6594
04:17:47,960 --> 04:17:49,600
DIRECT CAREGIVERS AND DIRECT

6595
04:17:49,600 --> 04:17:51,120
SUPPORT WORKERS WHILE ALSO

6596
04:17:51,120 --> 04:17:52,200
NEEDING SUPPORT OURSELVES AND IN

6597
04:17:52,200 --> 04:17:53,280
OUR OWN LIVES.

6598
04:17:53,280 --> 04:17:57,120
SO I LEAVE YOU WITH THIS AGAIN

6599
04:17:57,120 --> 04:17:59,000
REMINDER OF THE ISSUES THAT

6600
04:17:59,000 --> 04:17:59,600
DISPROPORTIONATELY IMPACT

6601
04:17:59,600 --> 04:18:01,080
AUTISTIC PEOPLE OF COLOR AND

6602
04:18:01,080 --> 04:18:02,320
OTHER DISABLED PEOPLE OF COLOR,

6603
04:18:02,320 --> 04:18:05,760
WE REFER TO THIS IN MANY SUCH

6604
04:18:05,760 --> 04:18:06,960
MARGINALIZED COMMUNITIES AS

6605
04:18:06,960 --> 04:18:08,760
ADDITIONAL TAX LEVIED ON OUR

6606
04:18:08,760 --> 04:18:10,160
EARNINGS CAPACITY IN THE SHORT

6607
04:18:10,160 --> 04:18:12,040
TERMS OF WAGES AND SALARIES AS

6608
04:18:12,040 --> 04:18:14,000
WELL AS LONG-TERM IMPACT OVER

6609
04:18:14,000 --> 04:18:15,760
LIFETIME EARNINGS, AND THAT THE

6610
04:18:15,760 --> 04:18:17,280
EARNINGS POTENTIAL OF A PERSON

6611
04:18:17,280 --> 04:18:18,800
WHO DOES NOT HAVE DISABILITIES

6612
04:18:18,800 --> 04:18:21,200
AND IS NOT A CARETAKER ARE GOING

6613
04:18:21,200 --> 04:18:23,160
TO BE SIGNIFICANTLY HIGHER THAN

6614
04:18:23,160 --> 04:18:25,920
THE EARNINGS CAPACITY, OF A

6615
04:18:25,920 --> 04:18:27,440
PERSON WHO IS DISABLED, ALSO A

6616
04:18:27,440 --> 04:18:28,720
CAREGIVER AT THE SAME TIME.

6617
04:18:28,720 --> 04:18:31,160
SO THANK YOU VERY MUCH FOR YOUR

6618
04:18:31,160 --> 04:18:31,360
TIME.

6619
04:18:31,360 --> 04:18:33,040
AND I BELIEVE ALL THREE OF US

6620
04:18:33,040 --> 04:18:35,440
ARE AVAILABLE TO RESPOND TO

6621
04:18:35,440 --> 04:18:42,760
QUESTIONS AND FURTHER COMMENTS

6622
04:18:42,760 --> 04:18:52,320
FROM THE COMMITTEE MEMBERS.

6623
04:18:52,320 --> 04:18:54,200
>>I'M DR. KRYSTAL
HERNANDEZ, A

6624
04:18:54,200 --> 04:18:56,240
MOTHER WITH MY YOUNGEST BEING

6625
04:18:56,240 --> 04:18:56,480
AUTISTIC.

6626
04:18:56,480 --> 04:18:58,520
WE STARTED OUR AUTISM JOURNEY

6627
04:18:58,520 --> 04:19:01,160
NEARLY SIX YEARS AGO WITH

6628
04:19:01,160 --> 04:19:02,560
TERRIBLE EXPERIENCES AND LIMITED

6629
04:19:02,560 --> 04:19:02,960
SUPPORTS.

6630
04:19:02,960 --> 04:19:04,960
I'VE MADE IT MY MISSION TO HELP

6631
04:19:04,960 --> 04:19:06,520
OTHERS SHARE VOICE AND STORIES

6632
04:19:06,520 --> 04:19:09,920
TO PUSH FOR POSITIVE CHANGE,

6633
04:19:09,920 --> 04:19:11,320
FOCUSED ON QUALITY INCLUSION,

6634
04:19:11,320 --> 04:19:12,240
DIGNITY, EQUITY.

6635
04:19:12,240 --> 04:19:17,360
MY FAMILY WALKS TWO CULTURES,

6636
04:19:17,360 --> 04:19:18,760
NATIVE AMERICAN CHEROKEE

6637
04:19:18,760 --> 04:19:21,040
CITIZENS AND LATINO, GIVING ME

6638
04:19:21,040 --> 04:19:21,800
UNIQUE EXPERIENCES AND

6639
04:19:21,800 --> 04:19:24,560
PERSPECTIVES BUT ALSO A LOOK

6640
04:19:24,560 --> 04:19:26,560
INTO THE INTERSECTIONALITY OF

6641
04:19:26,560 --> 04:19:28,520
BOTH, SPECIFICALLY AS RELATES TO

6642
04:19:28,520 --> 04:19:29,480
AUTISM JOURNEY.

6643
04:19:29,480 --> 04:19:31,560
EVERY DAY I'M CONTACTED BY

6644
04:19:31,560 --> 04:19:39,040
DOZENS OF PEOPLE ALL  OVER THE

6645
04:19:39,040 --> 04:19:40,240
UNITED STATES, STORIES FROM

6646
04:19:40,240 --> 04:19:42,640
COMMUNITIES, WE HAVE TO BUILD

6647
04:19:42,640 --> 04:19:44,520
SYSTEMS OF EQUITY AND SAFETY.

6648
04:19:44,520 --> 04:19:47,240
THERE CONTINUES TO BE A NEED FOR

6649
04:19:47,240 --> 04:19:48,000
SPECIFIC RESEARCH, FUNDING,

6650
04:19:48,000 --> 04:19:50,520
DATA, SUPPORTS AND SERVICES

6651
04:19:50,520 --> 04:19:52,360
TRULY BUILT BY AND FOR NATIVE

6652
04:19:52,360 --> 04:19:53,760
AMERICANS AND LATINOS AND

6653
04:19:53,760 --> 04:19:54,160
AUTISM.

6654
04:19:54,160 --> 04:19:55,560
WHEN WE TALK ABOUT TRIBAL

6655
04:19:55,560 --> 04:20:01,200
NATIONS WE ALSO NEED TO

6656
04:20:01,200 --> 04:20:02,200
RECOGNIZE AND HONOR SOVEREIGNTY,

6657
04:20:02,200 --> 04:20:03,640
TO MANAGE PROGRAM JUST LIKE

6658
04:20:03,640 --> 04:20:04,960
STATES DO.

6659
04:20:04,960 --> 04:20:07,680
WE HAVE SEGMENTED AND ONE-OFF

6660
04:20:07,680 --> 04:20:08,760
PROJECTS, CATCHING MARKETING

6661
04:20:08,760 --> 04:20:11,080
CAMPAIGNS, SERVICE DESERTS, LACK

6662
04:20:11,080 --> 04:20:12,480
OF REPRESENTATION AND PROVIDERS,

6663
04:20:12,480 --> 04:20:13,560
ABSOLUTE DISCONNECT WITH

6664
04:20:13,560 --> 04:20:13,920
CULTURE.

6665
04:20:13,920 --> 04:20:15,760
WE NEED MORE AND DESERVE MORE.

6666
04:20:15,760 --> 04:20:17,880
WE NEED TO BE IN THE SPACE WHERE

6667
04:20:17,880 --> 04:20:19,200
IS DECISIONS ARE MADE, LENDING

6668
04:20:19,200 --> 04:20:20,600
OUR OWN KNOWLEDGE AND

6669
04:20:20,600 --> 04:20:22,680
EXPERIENCES TO THE ITEMS OF

6670
04:20:22,680 --> 04:20:23,560
CONSIDERATION FOR FUNDING,

6671
04:20:23,560 --> 04:20:25,360
POLICY AND PRACTICE.

6672
04:20:25,360 --> 04:20:27,480
WE MUST CONTINUE TO CHALLENGE

6673
04:20:27,480 --> 04:20:28,240
STAGNANT OPPRESSIVE AND

6674
04:20:28,240 --> 04:20:30,200
DISRESPECTFUL WAYS OF BUSINESS

6675
04:20:30,200 --> 04:20:31,600
AND COMMUNICATION.

6676
04:20:31,600 --> 04:20:33,600
WE NEED CULTURALLY ROOTED POLICY

6677
04:20:33,600 --> 04:20:34,800
AND SERVICES WHICH IS MUCH MORE

6678
04:20:34,800 --> 04:20:37,240
THAN A CLASS OR MARKETING, IT IS

6679
04:20:37,240 --> 04:20:40,240
ABOUT HONORING AND GIVING SPACE,

6680
04:20:40,240 --> 04:20:43,080
NOT AS AN ASIDE BUT AS BACKBONE

6681
04:20:43,080 --> 04:20:44,560
IN SERVICE AND SUPPORT.

6682
04:20:44,560 --> 04:20:47,160
OUR CULTURE A BEAUTIFUL AND

6683
04:20:47,160 --> 04:20:47,840
VITAL, OUR IDENTITY.

6684
04:20:47,840 --> 04:20:49,920
WHEN WE TELL THE PERSON THAT

6685
04:20:49,920 --> 04:20:51,920
THEY ARE NOT WELCOMED, ALL OF

6686
04:20:51,920 --> 04:20:53,200
THEM, THEIR WHOLE PERSON INTO

6687
04:20:53,200 --> 04:21:01,080
SPACES WHERE SAFETY AND WELLNESS

6688
04:21:01,080 --> 04:21:02,240
ARE SUPPOSED TO BE PARAMOUNT,

6689
04:21:02,240 --> 04:21:05,440
WHAT ARE WE'VE SAYING?

6690
04:21:05,440 --> 04:21:07,520
I WANT TO SHARE SEVEN MONTHS AGO

6691
04:21:07,520 --> 04:21:09,640
IN PARTNERSHIP WITH THE STATE OF

6692
04:21:09,640 --> 04:21:11,800
THE STATES INTELLECTUAL AND

6693
04:21:11,800 --> 04:21:14,000
DEVELOPMENTAL DISABILITIES WE

6694
04:21:14,000 --> 04:21:16,280
LAUNCHED BLACK FEATHERS PODCAST,

6695
04:21:16,280 --> 04:21:18,680
YOU CAN SEE THE FLYER ON THE

6696
04:21:18,680 --> 04:21:21,320
SCREEN FOCUSING ON JOURNEYS WITH

6697
04:21:21,320 --> 04:21:21,920
DISABILITIES.

6698
04:21:21,920 --> 04:21:23,160
WE'VE HAD AMAZING GUESTS JOIN US

6699
04:21:23,160 --> 04:21:25,160
SO FAR AND MUCH MORE TO COME.

6700
04:21:25,160 --> 04:21:28,920
WE GET TO HEAR STRUGGLES,

6701
04:21:28,920 --> 04:21:29,880
TRIUMPHS BELIEFS, CUSTOMS, CALL

6702
04:21:29,880 --> 04:21:30,680
TO ACTION.

6703
04:21:30,680 --> 04:21:34,960
IT IS THEIR WORDS THAT HOLD SUCH

6704
04:21:34,960 --> 04:21:35,800
CRITICAL PERSPECTIVE AND POWER.

6705
04:21:35,800 --> 04:21:38,640
WE WERE ABLE TO HEAR HOW THE

6706
04:21:38,640 --> 04:21:41,600
LACK OF ACCOMMODATIONS IMPACTS

6707
04:21:41,600 --> 04:21:44,240
SOME ABILITY TO PARTICIPATE IN

6708
04:21:44,240 --> 04:21:46,800
CEREMONY AND PRACTICES, FOR

6709
04:21:46,800 --> 04:21:47,760
EXAMPLE A POW-WOW, ROBBING ONE

6710
04:21:47,760 --> 04:21:50,520
OF KNOWING AND LEARNING WITHIN

6711
04:21:50,520 --> 04:21:51,600
THEIR CULTURE FROM BELONGING,

6712
04:21:51,600 --> 04:21:56,520
OUR  CULTURE IS PROTECTORY OFIVE

6713
04:21:56,520 --> 04:21:57,920
AND WE NEED TO ACCOMMODATE TO

6714
04:21:57,920 --> 04:22:00,480
ANCHOR THEM IN OUR CIRCLE.

6715
04:22:00,480 --> 04:22:02,400
WE HAVE ALSO HAD TRIBAL NATIONS

6716
04:22:02,400 --> 04:22:04,960
COUNCILWOMAN ON AND DISCUSS

6717
04:22:04,960 --> 04:22:07,960
YOUR -- - COME ON AND DISCUSS

6718
04:22:07,960 --> 04:22:08,880
PROJECTS, SPECIFICALLY THIS

6719
04:22:08,880 --> 04:22:10,960
MONTH'S EPISODE COMING OUT

6720
04:22:10,960 --> 04:22:13,440
MONDAY IS THE CHICKASAW NATION

6721
04:22:13,440 --> 04:22:16,240
OUTLINING HOW THEY ARE FUNDING

6722
04:22:16,240 --> 04:22:17,640
DISABILITIES CREATING A SHIFT TO

6723
04:22:17,640 --> 04:22:22,800
BE MORE RESPONSIVE FOR AUTISTIC

6724
04:22:22,800 --> 04:22:24,760
CITIZENS AND FAMILIES.

6725
04:22:24,760 --> 04:22:26,080
THEY ARE CHALLENGING OTHERS TO

6726
04:22:26,080 --> 04:22:30,760
DO THE SAME.

6727
04:22:30,760 --> 04:22:35,120
WE'VE HAD GUESTS DISCUSS

6728
04:22:35,120 --> 04:22:35,400
JOURNEYS.

6729
04:22:35,400 --> 04:22:39,840
NATIONAL INDIAN COUNCIL ON AGING

6730
04:22:39,840 --> 04:22:41,560
PUBLISHED A TWO-YEAR PROJECT,

6731
04:22:41,560 --> 04:22:43,560
UNDERSTANDING DISABILITIES IN

6732
04:22:43,560 --> 04:22:44,560
AMERICAN INDIANS AND ALASKA

6733
04:22:44,560 --> 04:22:45,200
NATIVE COMMUNITIES, I WAS

6734
04:22:45,200 --> 04:22:47,800
FORTUNATE TO HAVE WORKED ON THIS

6735
04:22:47,800 --> 04:22:48,640
MEANINGFUL PROJECT.

6736
04:22:48,640 --> 04:22:49,200
PLEASE SHARE THIS.

6737
04:22:49,200 --> 04:22:51,120
IT WAS FEATURED IN YOUR

6738
04:22:51,120 --> 04:22:51,440
NEWSLETTER.

6739
04:22:51,440 --> 04:22:53,520
THIS IS GEARED TOWARDS TRIBAL

6740
04:22:53,520 --> 04:22:54,440
NATIONS AND STAKEHOLDERS,

6741
04:22:54,440 --> 04:22:56,840
FAMILIES, INDIVIDUALS, IT'S A

6742
04:22:56,840 --> 04:23:00,200
PLETHORA OF RESOURCES AND

6743
04:23:00,200 --> 04:23:01,080
INFORMATION.

6744
04:23:01,080 --> 04:23:02,600
ONE ADDITIONAL POINT, LATINOS

6745
04:23:02,600 --> 04:23:04,040
ARE OFTEN UTILIZEERS OF CLINIC

6746
04:23:04,040 --> 04:23:07,520
SYSTEMS, I HEAR FROM PARENTS ALL

6747
04:23:07,520 --> 04:23:10,480
THE TIME, ROTATING DOCTORS AND

6748
04:23:10,480 --> 04:23:12,560
PROVIDERS.

6749
04:23:12,560 --> 04:23:13,360
REMOVING CONSISTENCY AND

6750
04:23:13,360 --> 04:23:16,200
MONITORING AND REDUCING

6751
04:23:16,200 --> 04:23:18,400
DETECTION OPPORTUNITIES,

6752
04:23:18,400 --> 04:23:24,160
LANGUAGE BARRIERS POSE

6753
04:23:24,160 --> 04:23:24,480
OBSTACLES.

6754
04:23:24,480 --> 04:23:26,560
CITIZENSHIP STATUS PLAYS A ROLE

6755
04:23:26,560 --> 04:23:27,080
IN ACCEPTING INTERVENTION.

6756
04:23:27,080 --> 04:23:29,760
YOU DON'T KNOW WHAT YOU DON'T

6757
04:23:29,760 --> 04:23:30,840
AND DON'T KNOW HOW TO GET WHAT

6758
04:23:30,840 --> 04:23:32,880
YOU DON'T KNOW YOU NEED.

6759
04:23:32,880 --> 04:23:34,120
REPRESENTATION MATTERS.

6760
04:23:34,120 --> 04:23:35,880
VOICES MATTER.

6761
04:23:35,880 --> 04:23:36,760
MOST SIGNIFICANTLY WE MATTER.

6762
04:23:36,760 --> 04:23:41,320
TO END I WOULD LIKE TO QUOTE A

6763
04:23:41,320 --> 04:23:42,120
POWERFUL HISTORICAL CHEROKEE

6764
04:23:42,120 --> 04:23:44,160
CHIEF, THE SECRET OF OUR SUCCESS

6765
04:23:44,160 --> 04:23:46,280
WE NEVER, NEVER GIVE UP.

6766
04:23:46,280 --> 04:23:48,240
WE ARE RESILIENT PEOPLE.

6767
04:23:48,240 --> 04:23:48,560
YES.

6768
04:23:48,560 --> 04:23:49,640
WE NEVER GIVE UP.

6769
04:23:49,640 --> 04:23:54,120
AT SOME POINT OUR COLT  -- SOCIY

6770
04:23:54,120 --> 04:23:55,520
NEEDS TO MAKE IT LESS OF A

6771
04:23:55,520 --> 04:23:55,760
FIGHT.

6772
04:23:55,760 --> 04:23:58,920
WE NEED TO HAVE JOURNEYS INFORM

6773
04:23:58,920 --> 04:23:59,280
THROUGH CHANGE.

6774
04:23:59,280 --> 04:24:00,360
I'M AVAILABLE TO CONNECT.

6775
04:24:00,360 --> 04:24:01,800
TOGETHER WE'RE STRONGER.

6776
04:24:01,800 --> 04:24:03,520
I'M EXTREMELY THANKFUL FOR IACC

6777
04:24:03,520 --> 04:24:08,280
FOR THIS CRITICAL FOCUS ON

6778
04:24:08,280 --> 04:24:10,520
EQUITY AND INCLUSION.

6779
04:24:10,520 --> 04:24:13,040
>>THANK YOU TO ALL OF OUR

6780
04:24:13,040 --> 04:24:15,240
PANELISTS TODAY AND SPEAKERS FOR

6781
04:24:15,240 --> 04:24:17,560
THIS WONDERFUL SESSION.

6782
04:24:17,560 --> 04:24:20,720
WE ALL LEARNED A LOT, AND HEARD

6783
04:24:20,720 --> 04:24:24,600
SOME REALLY POWERFUL

6784
04:24:24,600 --> 04:24:25,760
PERSPECTIVES ON THIS ISSUE.

6785
04:24:25,760 --> 04:24:26,840
LOOKING FORWARD TO QUESTIONS AND

6786
04:24:26,840 --> 04:24:28,040
ANSWERS WITH THE COMMITTEE.

6787
04:24:28,040 --> 04:24:33,520
WE HAVE TIME FOR QUESTIONS. 

6788
04:24:33,520 --> 04:24:38,560
I SEE YETTA MYRICK?

6789
04:24:38,560 --> 04:24:40,640
>>HELLO, I'VE
TRANSITIONED TO

6790
04:24:40,640 --> 04:24:41,080
THE CALL.

6791
04:24:41,080 --> 04:24:42,400
HAPPY TO THE TEAM FOR BRING

6792
04:24:42,400 --> 04:24:45,560
THICK PANEL TOGETHER.

6793
04:24:45,560 --> 04:24:48,320
MANY OF YOU I'VE WORKED WITH OR

6794
04:24:48,320 --> 04:24:50,440
COLLABORATED OR HAVE KNOWN YOU

6795
04:24:50,440 --> 04:24:52,280
IN PASSING, AND SO THANKFUL FOR

6796
04:24:52,280 --> 04:24:54,400
YOU TO COME ON AND SHARE YOUR

6797
04:24:54,400 --> 04:24:56,280
EXPERIENCE AND YOUR THOUGHTS.

6798
04:24:56,280 --> 04:24:59,000
THE RESEARCH THAT YOU'RE DOING

6799
04:24:59,000 --> 04:25:02,720
IS AMAZING.

6800
04:25:02,720 --> 04:25:06,640
IT GIVES ME HOPE FOR PEOPLE OF

6801
04:25:06,640 --> 04:25:08,280
COLOR.

6802
04:25:08,280 --> 04:25:09,200
THIS WORK IS VITAL.

6803
04:25:09,200 --> 04:25:12,560
I WANT TO SAY THANK YOU TO YOU

6804
04:25:12,560 --> 04:25:14,240
ALL FOR WHAT YOU SHARED TODAY.

6805
04:25:14,240 --> 04:25:15,840
GOOD TO SEE YOU ALL.

6806
04:25:15,840 --> 04:25:16,120
THANK YOU.

6807
04:25:16,120 --> 04:25:17,280
>>THANK YOU.

6808
04:25:17,280 --> 04:25:19,200
NICE SEEING YOU TOO.

6809
04:25:19,200 --> 04:25:25,720
>>THANK YOU, YETTA.

6810
04:25:25,720 --> 04:25:27,040
JENNY MAI PHAN.

6811
04:25:27,040 --> 04:25:28,560
>>IT ECHO THE COMMENT.

6812
04:25:28,560 --> 04:25:29,880
THANK YOU FOR COMING AND SHARING

6813
04:25:29,880 --> 04:25:32,400
YOUR WORK.

6814
04:25:32,400 --> 04:25:36,000
TWO STATEMENTS TO SHARE AND ONE

6815
04:25:36,000 --> 04:25:38,040
TO HOPEFULLY GIVE YOU SOME FOOD

6816
04:25:38,040 --> 04:25:39,600
FOR THOUGHT TO BRING BACK TO

6817
04:25:39,600 --> 04:25:41,440
YOUR WORK, YOUR RESPECTIVE

6818
04:25:41,440 --> 04:25:41,960
WORKS.

6819
04:25:41,960 --> 04:25:44,200
THE FIRST IS ABOUT HOW AUTISM

6820
04:25:44,200 --> 04:25:47,840
STIGMA IS BEING ADDRESSED AMONG

6821
04:25:47,840 --> 04:25:50,280
COMMUNITY PARTNERS OF

6822
04:25:50,280 --> 04:25:51,720
RACIAL/ETHNIC MINORITIZED GROUP.

6823
04:25:51,720 --> 04:25:52,560
THERE ARE COMMUNITIES WHERE

6824
04:25:52,560 --> 04:25:55,840
THERE IS LOW AUTISM AWARENESS,

6825
04:25:55,840 --> 04:25:57,320
AND NOT ACCEPTED THAT STILL

6826
04:25:57,320 --> 04:25:59,480
EXISTS IN THE UNITED STATES.

6827
04:25:59,480 --> 04:26:01,760
AND THERE ARE SMALL GRASS ROOTS

6828
04:26:01,760 --> 04:26:03,640
ADVOCACY GROUPS WHO PROVIDE

6829
04:26:03,640 --> 04:26:04,840
EDUCATION TO THESE COMMUNITIES

6830
04:26:04,840 --> 04:26:12,280
THAT ARE UNDERFUNDED AND LACK

6831
04:26:12,280 --> 04:26:13,600
RESOURCES DESPITE STIGMA.

6832
04:26:13,600 --> 04:26:17,000
TALKING WITH ADVOCACY GROUPS

6833
04:26:17,000 --> 04:26:19,680
MYSELF, THEY LEARNED AUTISTIC

6834
04:26:19,680 --> 04:26:23,760
CHILDREN EXPOSED TO STIGMATIZING

6835
04:26:23,760 --> 04:26:24,720
PERSPECTIVES ABOUT NEGATIVELY

6836
04:26:24,720 --> 04:26:26,600
AFFECTING MENTAL HEALTH, SOME

6837
04:26:26,600 --> 04:26:28,720
CHILDREN ARE PHYSICALLY ABUSED,

6838
04:26:28,720 --> 04:26:30,000
MALTREATED, NEGLECTED.

6839
04:26:30,000 --> 04:26:32,640
IT'S SUCH A CRITICAL AND

6840
04:26:32,640 --> 04:26:33,840
BENEFICIAL OPPORTUNITY FOR

6841
04:26:33,840 --> 04:26:35,800
RESEARCHERS TO ENGAGE WITH THESE

6842
04:26:35,800 --> 04:26:38,800
COMMUNITIES IN A RESPONSIVE WAY,

6843
04:26:38,800 --> 04:26:40,800
AND RESEARCHERS CAN PARTNER WITH

6844
04:26:40,800 --> 04:26:45,880
GRASS ROOTED  ADVOCACY GROUPS FR

6845
04:26:45,880 --> 04:26:47,920
HELP IF THEY DON'T KNOW WHERE TO

6846
04:26:47,920 --> 04:26:48,920
START.

6847
04:26:48,920 --> 04:26:49,680
THE SECOND STATEMENT TO THINK

6848
04:26:49,680 --> 04:26:54,400
ABOUT IN YOUR WORK WHICH YOU

6849
04:26:54,400 --> 04:26:56,680
ALREADY ARE, ABOUT NON-ENGLISH

6850
04:26:56,680 --> 04:26:57,560
COMMUNICATORS OR MINIMALLY

6851
04:26:57,560 --> 04:26:59,040
ENGLISH COMMUNICATORS WHO ARE

6852
04:26:59,040 --> 04:27:02,480
REFERRED TO ENGLISH AS A SECOND

6853
04:27:02,480 --> 04:27:03,560
LANGUAGE, ESL CLASSES IN

6854
04:27:03,560 --> 04:27:05,120
SCHOOLS, WHO WOULD MEET THE

6855
04:27:05,120 --> 04:27:06,760
CRITERIA FOR AN AUTISM

6856
04:27:06,760 --> 04:27:08,960
DIAGNOSIS, IF THEY WERE

6857
04:27:08,960 --> 04:27:11,000
APPROPRIATELY REFERRED, SOME

6858
04:27:11,000 --> 04:27:13,000
KIDS ARE MET WITH DOUBLE STIGMA

6859
04:27:13,000 --> 04:27:14,760
IN WHICH SCHOOLS AND CAREGIVERS

6860
04:27:14,760 --> 04:27:17,840
BELIEVE THE SOLUTION TO THEIR

6861
04:27:17,840 --> 04:27:20,200
EDUCATION UNDERPERFORMANCE IS TO

6862
04:27:20,200 --> 04:27:21,120
TEACH THEM ENGLISH.

6863
04:27:21,120 --> 04:27:23,280
AND IGNORE THAT THERE ARE OTHER

6864
04:27:23,280 --> 04:27:25,480
DEVELOPMENTAL FACTORS THAT WOULD

6865
04:27:25,480 --> 04:27:26,680
EXPLAIN THEIR UNDERPERFORMANCE.

6866
04:27:26,680 --> 04:27:31,080
SO I SPOKE WITH AN ESL TEACHER

6867
04:27:31,080 --> 04:27:32,120
WHO LACKS ADMINISTRATIVE SUPPORT

6868
04:27:32,120 --> 04:27:35,520
TO MAKE A REFERRAL FOR HER

6869
04:27:35,520 --> 04:27:37,960
STUDENTS WHOM SHE SUSPECT HAVE A

6870
04:27:37,960 --> 04:27:39,560
DEVELOPMENTAL DISABILITY, AND

6871
04:27:39,560 --> 04:27:41,320
SHE AND HER COLLEAGUES

6872
04:27:41,320 --> 04:27:42,240
EXPERIENCE EXACTLY THE SAME

6873
04:27:42,240 --> 04:27:44,080
PROBLEM IN THEIR SCHOOLS.

6874
04:27:44,080 --> 04:27:45,960
WHEN TALKING WITH CAREGIVERS THE

6875
04:27:45,960 --> 04:27:47,480
STIGMA IS SO INGRAINED IN THE

6876
04:27:47,480 --> 04:27:50,440
HOME THAT THEY REFUSE TO SEEK A

6877
04:27:50,440 --> 04:27:51,520
DIAGNOSIS FOR THEIR CHILD.

6878
04:27:51,520 --> 04:27:54,160
THERE ARE MANY LEFT BEHIND IN

6879
04:27:54,160 --> 04:27:57,320
OUR COUNTRY, WHO EITHER DO NOT

6880
04:27:57,320 --> 04:28:00,680
SPEAK ENGLISH FLUENTLY OR NOT

6881
04:28:00,680 --> 04:28:04,440
FLUENT ENOUGH, SO WITH THE TALKS

6882
04:28:04,440 --> 04:28:05,520
YOU HAVE GIVEN TODAY, I SO

6883
04:28:05,520 --> 04:28:06,880
APPRECIATE THE WORK YOU DO,

6884
04:28:06,880 --> 04:28:08,920
PLEASE KEEP DOING IT.

6885
04:28:08,920 --> 04:28:11,440
PLEASE SPREAD IT TO ALL OF OUR

6886
04:28:11,440 --> 04:28:13,280
COMMUNITIES IN OUR COUNTRY AND

6887
04:28:13,280 --> 04:28:14,280
REMEMBER THOSE WHO ARE STILL

6888
04:28:14,280 --> 04:28:16,600
LEFT BEHIND.

6889
04:28:16,600 --> 04:28:17,120
THANK YOU.

6890
04:28:17,120 --> 04:28:18,480
>>THANKS FOR YOUR
COMMENTS.

6891
04:28:18,480 --> 04:28:23,400
I WOULD JUST RESPOND TO THAT BY

6892
04:28:23,400 --> 04:28:24,600
SAYING ACTUALLY IN THE LEND

6893
04:28:24,600 --> 04:28:26,240
PROGRAM ONE THING WE HAVE

6894
04:28:26,240 --> 04:28:28,160
FELLOWS DO IS WORK WITH

6895
04:28:28,160 --> 04:28:29,880
COMMUNITY-BASED ORGANIZATIONS, A

6896
04:28:29,880 --> 04:28:31,680
LOT OF COMMUNITY-BASED

6897
04:28:31,680 --> 04:28:33,240
ORGANIZATIONS ARE DEALING WITH

6898
04:28:33,240 --> 04:28:37,600
UNDERSERVED COMMUNITIES. 

6899
04:28:37,600 --> 04:28:39,040
LIKE THERE'S AN ORGANIZATION

6900
04:28:39,040 --> 04:28:42,880
CALLED SAD, TO TALK ABOUT AUTISM

6901
04:28:42,880 --> 04:28:45,360
WITH PEOPLE, SOMALI COMMUNITY,

6902
04:28:45,360 --> 04:28:47,920
THERE'S ANOTHER COMMUNITY THAT

6903
04:28:47,920 --> 04:28:50,760
DEALS WITH THE PEOPLE IMMIGRANTS

6904
04:28:50,760 --> 04:28:53,680
FROM LATIN-SPEAKING COUNTRIES,

6905
04:28:53,680 --> 04:28:55,440
SO WE ARE ACTUALLY PROBABLY NOT

6906
04:28:55,440 --> 04:28:56,880
DOING ENOUGH BUT WE'RE DOING

6907
04:28:56,880 --> 04:28:57,920
SOMETHING.

6908
04:28:57,920 --> 04:29:01,040
I'M GLAD FOR YOUR COMMENT.

6909
04:29:01,040 --> 04:29:01,680
 

6910
04:29:01,680 --> 04:29:06,600
>>I WOULD JUST LIKE TO
SAY

6911
04:29:06,600 --> 04:29:06,800
THIS.

6912
04:29:06,800 --> 04:29:09,560
DR. BOYD AND I AND JILL LOCKE

6913
04:29:09,560 --> 04:29:11,240
WORKED ON PROJECTS, WORKED ON A

6914
04:29:11,240 --> 04:29:13,080
PROJECT TOGETHER, BUT MY

6915
04:29:13,080 --> 04:29:13,920
ORGANIZATION, COLOR OF AUTISM

6916
04:29:13,920 --> 04:29:16,160
FOUNDATION, WE TAKE THE HOLISTIC

6917
04:29:16,160 --> 04:29:16,680
APPROACH.

6918
04:29:16,680 --> 04:29:18,360
WE WORK WITH PARENTS, TRAIN THE

6919
04:29:18,360 --> 04:29:21,520
PARENTS ON HOW TO SUPPORT THEIR

6920
04:29:21,520 --> 04:29:23,160
CHILDREN, TO HAVE BETTER

6921
04:29:23,160 --> 04:29:23,400
OUTCOMES.

6922
04:29:23,400 --> 04:29:28,400
WE ENCOURAGE PARENTS TO EMBRACE

6923
04:29:28,400 --> 04:29:29,120
THEIR CHILD'S IDENTITY.

6924
04:29:29,120 --> 04:29:30,840
WE WORK WITH THEM TO UNDERSTAND

6925
04:29:30,840 --> 04:29:33,920
WHO THEIR CHILD REALLY IS, WHO

6926
04:29:33,920 --> 04:29:35,160
THEY TRULY ARE.

6927
04:29:35,160 --> 04:29:36,480
SO, THEIR CHILDREN HAVE A SENSE

6928
04:29:36,480 --> 04:29:38,480
OF WORTH BECAUSE THAT'S THE

6929
04:29:38,480 --> 04:29:40,320
BIGGEST PROBLEM THAT A LOT OF

6930
04:29:40,320 --> 04:29:41,320
THESE PARENTS DON'T HAVE THE

6931
04:29:41,320 --> 04:29:43,520
TOOLS THEY NEED TO SUPPORT

6932
04:29:43,520 --> 04:29:50,160
THEMSELVES LET ALONE THEIR

6933
04:29:50,160 --> 04:29:50,360
CHILD.

6934
04:29:50,360 --> 04:29:52,160
AND IF THEY -- IF YOU CONTINUE

6935
04:29:52,160 --> 04:29:53,720
TO ACT AS IF YOUR CHILD IS THE

6936
04:29:53,720 --> 04:29:57,960
CAT 

6937
04:29:57,960 --> 04:30:03,560
CATALYST OF OUR SORROW YOU'RE

6938
04:30:03,560 --> 04:30:04,960
BURDENING THEM WITH GUILT AND

6939
04:30:04,960 --> 04:30:05,440
SELF-WORTH.

6940
04:30:05,440 --> 04:30:08,680
WE DO EVERYTHING WE CAN TO

6941
04:30:08,680 --> 04:30:10,080
SUPPORT THE PARENT AS WELL AS

6942
04:30:10,080 --> 04:30:18,520
CHILD THAT WILL BE AN ADULT.

6943
04:30:18,520 --> 04:30:19,520
>>THANK YOU.

6944
04:30:19,520 --> 04:30:21,920
ANY OTHER COMMENTS?

6945
04:30:21,920 --> 04:30:26,400
>>I WANTED TO PIGGYBACK
OFF OF

6946
04:30:26,400 --> 04:30:28,080
THAT IDENTITY BECAUSE ONE OF THE

6947
04:30:28,080 --> 04:30:30,360
WAYS THAT I LEARNED HOW TO READ

6948
04:30:30,360 --> 04:30:33,120
ACTUALLY WAS MY MOM WAS AN

6949
04:30:33,120 --> 04:30:34,200
ACADEMIC, HER SPECIALTY WAS

6950
04:30:34,200 --> 04:30:35,200
AFRICAN AMERICAN LITERATURE AND

6951
04:30:35,200 --> 04:30:35,680
FILM.

6952
04:30:35,680 --> 04:30:39,560
AND I WENT TO AN ALL-WHITE

6953
04:30:39,560 --> 04:30:39,920
SCHOOL.

6954
04:30:39,920 --> 04:30:42,520
ONE THING SHE WOULD DO IS HAVE

6955
04:30:42,520 --> 04:30:44,280
ME READ BOOKS BY AND ABOUT

6956
04:30:44,280 --> 04:30:45,480
AFRICAN AMERICANS.

6957
04:30:45,480 --> 04:30:47,640
WHILE I WAS GETTING INTO READING

6958
04:30:47,640 --> 04:30:49,840
AS I WASN'T DOING BUT LEARNING

6959
04:30:49,840 --> 04:30:51,320
ABOUT MY OWN CULTURE AND

6960
04:30:51,320 --> 04:30:52,920
IDENTITY, HAVING A SENSE OF

6961
04:30:52,920 --> 04:30:55,120
PRIDE, SO THAT'S CERTAINLY

6962
04:30:55,120 --> 04:30:55,520
IMPORTANT.

6963
04:30:55,520 --> 04:31:02,560
I'LL DEFINITELY ENDORSE THAT. 

6964
04:31:02,560 --> 04:31:03,880
>>THIS IS LYDIA.

6965
04:31:03,880 --> 04:31:06,160
THANK YOU FOR YOUR COMMENTS AND

6966
04:31:06,160 --> 04:31:06,920
APPRECIATE THAT OUR INFORMATION

6967
04:31:06,920 --> 04:31:08,840
AS A GROUP HAS BEEN USEFUL TO

6968
04:31:08,840 --> 04:31:09,760
YOU ALL.

6969
04:31:09,760 --> 04:31:11,000
I THINK IT'S ALSO IMPORTANT FOR

6970
04:31:11,000 --> 04:31:13,480
ALL OF US TO BE VERY CLEAR ABOUT

6971
04:31:13,480 --> 04:31:14,480
OUR POSITIONALITY.

6972
04:31:14,480 --> 04:31:18,760
I SPOKE ABOUT THE EXPERIENCE OF

6973
04:31:18,760 --> 04:31:19,280
CONDITIONAL OR PRECARIOUS

6974
04:31:19,280 --> 04:31:20,840
PRIVILEGE WE MAY HOLD BY VIRTUE

6975
04:31:20,840 --> 04:31:21,680
OF PARTICIPATING IN THIS FORUM

6976
04:31:21,680 --> 04:31:23,920
AND BEING IN THIS TYPE OF SPACE,

6977
04:31:23,920 --> 04:31:25,520
EVEN THOUGH THERE ARE THOSE OF

6978
04:31:25,520 --> 04:31:27,520
US HERE INCLUDING THE FOUR ON

6979
04:31:27,520 --> 04:31:29,160
THIS PANEL WHO EXPERIENCE

6980
04:31:29,160 --> 04:31:29,760
MULTIPLE FORMS OF

6981
04:31:29,760 --> 04:31:31,120
MARGINALIZATION AT THE SAME

6982
04:31:31,120 --> 04:31:31,360
TIME.

6983
04:31:31,360 --> 04:31:33,960
AND SO ONE THING THAT IS REALLY

6984
04:31:33,960 --> 04:31:36,160
IMPORTANT FOR US TO BE

6985
04:31:36,160 --> 04:31:37,480
SPECIFICALLY CONCERNED WITH, AND

6986
04:31:37,480 --> 04:31:39,200
I SPOKE IN GENERALITIES BECAUSE

6987
04:31:39,200 --> 04:31:40,760
OUR ORGANIZATION DOES NATIONAL

6988
04:31:40,760 --> 04:31:42,280
AND GLOBAL WORK, AND I ONLY HAD

6989
04:31:42,280 --> 04:31:44,440
A FEW MINUTES TO SPEAK WITH YOU,

6990
04:31:44,440 --> 04:31:50,360
BUT TO NAME COMMUNITIES WE'RE

6991
04:31:50,360 --> 04:31:54,600
WORKING WITH, BEING FUNDED AND

6992
04:31:54,600 --> 04:31:56,080
WHERE WE'RE DOING OUR WORK.

6993
04:31:56,080 --> 04:31:59,880
I'M JOINING YOU TODAY FROM THE

6994
04:31:59,880 --> 04:32:08,760
UNSEATED TRADITIONAL LENS OF THE

6995
04:32:08,760 --> 04:32:10,400
HO CHUNK NATION PEOPLE, THE

6996
04:32:10,400 --> 04:32:14,160
LANDS HAD TO BE PURCHASED BACK

6997
04:32:14,160 --> 04:32:17,440
FROM THE TERRITORIAL GOVERNMENT

6998
04:32:17,440 --> 04:32:28,120
AS OPPOSED TO REPATRIATED AND

6999
04:32:28,120 --> 04:32:30,480
RETURNED. 

7000
04:32:30,480 --> 04:32:31,240
THESE TRAUMAS OF CLONALIZATION

7001
04:32:31,240 --> 04:32:32,120
CONTINUE TO IMPACT DISABLED

7002
04:32:32,120 --> 04:32:34,720
PEOPLE OF COLOR AND WAYS WE CAN

7003
04:32:34,720 --> 04:32:36,360
BE ASSESSED AND RECEIVE

7004
04:32:36,360 --> 04:32:38,680
SERVICES, AND BE UNDERSTOOD

7005
04:32:38,680 --> 04:32:40,320
WITHIN AND OUTSIDE OF OUR

7006
04:32:40,320 --> 04:32:41,040
COMMUNITIES, TO BE DELIBERATE

7007
04:32:41,040 --> 04:32:51,760
NAMING WHETHER WE ARE AND R WE O

7008
04:32:58,440 --> 04:32:59,800
WE'RE WORKING WITH ANYONE ELSE?

7009
04:32:59,800 --> 04:33:06,440
WE'LL MOVE TO THE NEXT QUESTION.

7010
04:33:06,440 --> 04:33:08,520
DENA GASSEN?

7011
04:33:08,520 --> 04:33:14,560
>>I'LL LET MORENIKE GO
BEFORE

7012
04:33:14,560 --> 04:33:14,720
ME.

7013
04:33:14,720 --> 04:33:18,560
>>GO AHEAD, MORENIKE.

7014
04:33:18,560 --> 04:33:20,160
>>MORENIKE SENT THEIR
QUESTION

7015
04:33:20,160 --> 04:33:21,120
OVER CHAT, A COMMENT.

7016
04:33:21,120 --> 04:33:24,480
THEY SAY I DON'T HAVE TOO MUCH

7017
04:33:24,480 --> 04:33:26,600
TO SAY BECAUSE I'M TOO EMOTIONAL

7018
04:33:26,600 --> 04:33:28,000
TO GATHER MY THOUGHTS.

7019
04:33:28,000 --> 04:33:29,760
PEOPLE OFTEN SAY WHY DO YOU HAVE

7020
04:33:29,760 --> 04:33:32,280
TO KEEP BRINGING UP RACE.

7021
04:33:32,280 --> 04:33:34,040
WE'RE TALKING ABOUT AUTISM.

7022
04:33:34,040 --> 04:33:36,240
THEY SAY RACE HAS NOTHING TO DO

7023
04:33:36,240 --> 04:33:37,520
WITH IT.

7024
04:33:37,520 --> 04:33:39,040
IT'S FRIGHTENING EVEN NOW PEOPLE

7025
04:33:39,040 --> 04:33:41,720
DON'T UNDERSTAND HOW FACTORS ARE

7026
04:33:41,720 --> 04:33:42,520
SO DEEPLY INTERTWINED WHERE

7027
04:33:42,520 --> 04:33:44,000
PEOPLE OF THE VOCAL MAJORITY WE

7028
04:33:44,000 --> 04:33:47,160
DON'T HAVE THE LUXURY OF

7029
04:33:47,160 --> 04:33:49,360
IGNORING CULTURAL ASPECTS, THEY

7030
04:33:49,360 --> 04:33:53,720
WANT TO THANK BRIAN, JILL,

7031
04:33:53,720 --> 04:33:55,480
CAMILLE , LYDIA AND CRYSTAL FOR

7032
04:33:55,480 --> 04:33:57,880
MAKING MYSELF AND MY CHILDREN

7033
04:33:57,880 --> 04:33:58,240
VISIBLE.

7034
04:33:58,240 --> 04:34:01,720
YETTA SENT A COMMENT THROUGH.

7035
04:34:01,720 --> 04:34:02,720
SAYING LYDIA, YOU'RE 100%

7036
04:34:02,720 --> 04:34:04,360
CORRECT, THINK ABOUT THE FACT

7037
04:34:04,360 --> 04:34:05,480
WE'RE PRIVILEGED TO HAVE A SEAT

7038
04:34:05,480 --> 04:34:08,280
AT THE TABLE AND IT'S OUR DUTY,

7039
04:34:08,280 --> 04:34:09,920
THEY BELIEVE, TO SUPPORT OUR

7040
04:34:09,920 --> 04:34:12,000
COMMUNITIES.

7041
04:34:12,000 --> 04:34:14,720
 

7042
04:34:14,720 --> 04:34:21,640
>>THANK YOU FOR THOSE
COMMENTS.

7043
04:34:21,640 --> 04:34:23,320
>>MORENIKE, THANK YOU FOR
THE

7044
04:34:23,320 --> 04:34:23,640
COMMENT.

7045
04:34:23,640 --> 04:34:25,600
I WANT TO RESPOND.

7046
04:34:25,600 --> 04:34:27,280
IT WAS BROUGHT UP WITH THE ISSUE

7047
04:34:27,280 --> 04:34:30,520
OF STIGMA TO TALK ABOUT HOW

7048
04:34:30,520 --> 04:34:33,160
THESE ISSUES OF RACE AND

7049
04:34:33,160 --> 04:34:34,240
DISABILITY ARE INTERTWINED AND

7050
04:34:34,240 --> 04:34:36,880
SHOULD BE THOUGHT OF TOGETHER.

7051
04:34:36,880 --> 04:34:41,280
I WANT TO CREDIT DR. ELIZABETH

7052
04:34:41,280 --> 04:34:43,520
MORGAN, BROUGHT UP IN ANOTHER

7053
04:34:43,520 --> 04:34:47,040
MEETING YETTA HOSTED FOR HER

7054
04:34:47,040 --> 04:34:47,280
GROUP.

7055
04:34:47,280 --> 04:34:48,680
DR. MORGAN REMINDED ISSUES OF

7056
04:34:48,680 --> 04:34:50,120
STIGMA IN PARTICULAR FOR THE

7057
04:34:50,120 --> 04:34:51,880
BLACK COMMUNITY ARE ROOTED IN

7058
04:34:51,880 --> 04:34:54,600
HISTORICAL ISSUES THAT BLACKNESS

7059
04:34:54,600 --> 04:34:55,920
ITSELF WASN'T THOUGHT OF AS A

7060
04:34:55,920 --> 04:34:57,440
DISABILITY, HOW PEOPLE MEASURED

7061
04:34:57,440 --> 04:34:58,880
THE SKULL SIZES OF BLACK PEOPLE

7062
04:34:58,880 --> 04:35:03,600
TO SUGGEST THEY WERE LOWER IN

7063
04:35:03,600 --> 04:35:04,880
INTELLIGENCE, SO THE RESULTING

7064
04:35:04,880 --> 04:35:07,280
STIGMA WE SOMETIMES SEE FROM

7065
04:35:07,280 --> 04:35:08,480
RACIALIZED AND MINORITIZED

7066
04:35:08,480 --> 04:35:09,480
COMMUNITIES ARE OFTEN

7067
04:35:09,480 --> 04:35:10,800
HISTORICALLY ROOTED IN OTHER

7068
04:35:10,800 --> 04:35:11,040
ISSUES.

7069
04:35:11,040 --> 04:35:13,520
AND SO THIS ISSUE OF HOW

7070
04:35:13,520 --> 04:35:16,120
IDENTITY AND DISABILITY AND RACE

7071
04:35:16,120 --> 04:35:18,000
ALL INTERSECT, IT REALLY IS

7072
04:35:18,000 --> 04:35:20,520
INTERTWINED AND CAN'T BE

7073
04:35:20,520 --> 04:35:23,280
DIVORCED BECAUSE THOSE

7074
04:35:23,280 --> 04:35:24,040
IDENTITIES ARE AFFECTING

7075
04:35:24,040 --> 04:35:26,760
EXPERIENCES WE'RE HAVING AND

7076
04:35:26,760 --> 04:35:29,760
OUTCOMES THAT PEOPLE ARE ABLE TO

7077
04:35:29,760 --> 04:35:32,560
REALIZE OR NOT REALIZE.

7078
04:35:32,560 --> 04:35:34,000
THAT'S JUST AN EXAMPLE HOW THESE

7079
04:35:34,000 --> 04:35:37,520
ISSUES REALLY ARE ROOTED IN THE

7080
04:35:37,520 --> 04:35:38,640
LARGER CONTEXT OF OUR SOCIETY.

7081
04:35:38,640 --> 04:35:44,240
THANK YOU FOR THE COMMENT,

7082
04:35:44,240 --> 04:35:44,480
MORENIKE.

7083
04:35:44,480 --> 04:35:48,360
>>WE TALKED ABOUT THIS ON

7084
04:35:48,360 --> 04:35:52,080
PODCAST, FOUR INDIVIDUALS, TWO

7085
04:35:52,080 --> 04:35:53,600
WERE HOCHUNK NATIONS TALKING

7086
04:35:53,600 --> 04:35:58,320
ABOUT THEIR NATION, JOURNEYS AND

7087
04:35:58,320 --> 04:35:58,760
STIGMA.

7088
04:35:58,760 --> 04:36:00,360
NATIVE AMERICANS HAVE THE

7089
04:36:00,360 --> 04:36:01,360
HISTORICAL TRAUMA LENS, ONGOING

7090
04:36:01,360 --> 04:36:03,160
TRAUMA BECAUSE OF THE FACT

7091
04:36:03,160 --> 04:36:03,880
PEOPLE DON'T RECOGNIZE IT'S

7092
04:36:03,880 --> 04:36:05,320
STILL AN ISSUE.

7093
04:36:05,320 --> 04:36:08,680
THAT IT'S STILL ONGOING.

7094
04:36:08,680 --> 04:36:10,840
THAT IT STILL MATTERS.

7095
04:36:10,840 --> 04:36:11,800
IT'S ONGOING.

7096
04:36:11,800 --> 04:36:12,800
>>THIS IS LYDIA.

7097
04:36:12,800 --> 04:36:15,040
THIS IS TRUE ACROSS ALL

7098
04:36:15,040 --> 04:36:15,840
NEGATIVELY RACIALIZED

7099
04:36:15,840 --> 04:36:18,120
COMMUNITIES FOR BOTH CULTURALLY

7100
04:36:18,120 --> 04:36:18,840
AND HISTORICALLY SPECIFIC

7101
04:36:18,840 --> 04:36:20,000
REASONS, AND BECAUSE OF THE WAYS

7102
04:36:20,000 --> 04:36:22,280
IN WHICH AS I TEACH MY OWN

7103
04:36:22,280 --> 04:36:24,080
STUDENTS IN MY COURSES ON

7104
04:36:24,080 --> 04:36:25,480
DISABILITY AND RACE AND THE

7105
04:36:25,480 --> 04:36:27,560
HISTORIES OF DISABILITY AND RACE

7106
04:36:27,560 --> 04:36:30,840
IN THIS COUNTRY ARE

7107
04:36:30,840 --> 04:36:32,080
CONCEPTUALIZATIONS OF WHITENESS

7108
04:36:32,080 --> 04:36:34,440
AND ABLENESS AND HEALTH, DEEPLY

7109
04:36:34,440 --> 04:36:35,200
INTERTWINED.

7110
04:36:35,200 --> 04:36:36,520
AND ALWAYS HAVE BEEN.

7111
04:36:36,520 --> 04:36:38,720
WHETHER THAT IS IN EAST ASIAN

7112
04:36:38,720 --> 04:36:41,480
IMMIGRANT FAMILIES, FEELING A

7113
04:36:41,480 --> 04:36:42,440
DRIVE TO PURSUE SO-CALLED

7114
04:36:42,440 --> 04:36:44,840
EXCELLENCE IN ORDER TO BE SEEN

7115
04:36:44,840 --> 04:36:48,240
AS SUFFICIENTLY WELL BEHAVED AND

7116
04:36:48,240 --> 04:36:51,080
COMPLIANT AND PARTICIPATORY, IN

7117
04:36:51,080 --> 04:36:52,760
WHITE STRUCTURES, WHETHER THAT'S

7118
04:36:52,760 --> 04:36:54,920
RESISTANT DR. BOYD SPOKE ABOUT

7119
04:36:54,920 --> 04:36:57,320
IN BLACK COMMUNITIES TO SPEAKING

7120
04:36:57,320 --> 04:36:59,320
ABOUT DISABILITY OPENLY OR AS

7121
04:36:59,320 --> 04:37:01,840
DR. HERNANDEZ WAS DISCUSSING IN

7122
04:37:01,840 --> 04:37:03,960
NATIVE COMMUNITIES ACROSS

7123
04:37:03,960 --> 04:37:06,120
DIFFERENT TRIBAL NATIONS AND

7124
04:37:06,120 --> 04:37:08,280
COMMUNITIES THAT WE EXPERIENCE

7125
04:37:08,280 --> 04:37:10,600
THIS EXPECTATION AND PRESSURE TO

7126
04:37:10,600 --> 04:37:11,880
DISAVOW DISABILITY AND TO

7127
04:37:11,880 --> 04:37:13,520
DISASSOCIATE AND DISTANCE

7128
04:37:13,520 --> 04:37:15,280
OURSELVES FROM DISABILITY IN

7129
04:37:15,280 --> 04:37:15,960
COMMUNITIES OF COLOR BECAUSE OF

7130
04:37:15,960 --> 04:37:21,640
THE WAYS IN WHICH ABLENESS

7131
04:37:21,640 --> 04:37:22,080
 AND

7132
04:37:22,080 --> 04:37:23,400
WHITENESS ARE INTERTWINED AND

7133
04:37:23,400 --> 04:37:29,200
MAY INTERNALIZE IF WE CATEGORIZE

7134
04:37:29,200 --> 04:37:31,600
AND ACCEPT, IT'S INTERNALIZING A

7135
04:37:31,600 --> 04:37:33,120
WHITE AND COLONIZER LENS OR

7136
04:37:33,120 --> 04:37:35,000
FRAMEWORK FOR OUR PEOPLE AND

7137
04:37:35,000 --> 04:37:35,320
COMMUNITIES.

7138
04:37:35,320 --> 04:37:37,200
AND IN REALITY, IT IS DISABLED

7139
04:37:37,200 --> 04:37:40,600
PEOPLE OF COLOR WHO ARE

7140
04:37:40,600 --> 04:37:42,680
RESISTING THIS TYPE OF ABLEIST

7141
04:37:42,680 --> 04:37:45,400
PREJUDICE AND THE IMPACT THAT IT

7142
04:37:45,400 --> 04:37:46,200
HAS INTERGENERATIONALLY IN OUR

7143
04:37:46,200 --> 04:37:48,160
COMMUNITIES AS WELL AS OUR

7144
04:37:48,160 --> 04:37:52,000
ABILITY TO SEEK REDRESS AND

7145
04:37:52,000 --> 04:37:55,040
JUSTICE.

7146
04:37:55,040 --> 04:37:57,680
>>I WOULD ADD THAT IT'S

7147
04:37:57,680 --> 04:37:58,720
INTERESTING THE WAY PEOPLE OF

7148
04:37:58,720 --> 04:38:00,480
COLOR AND PEOPLE WITH

7149
04:38:00,480 --> 04:38:02,800
DISABILITIES OFTEN HAVE TO GO

7150
04:38:02,800 --> 04:38:05,880
ABOVE AND BEYOND TO PROVE BASIC

7151
04:38:05,880 --> 04:38:09,120
HUMANITY, EVEN GOING TO BACK TO

7152
04:38:09,120 --> 04:38:11,160
SLAVERY, IN ESSENCE PROVE THEY

7153
04:38:11,160 --> 04:38:12,880
WERE HUMANS SLAVES WROTE SLAVE

7154
04:38:12,880 --> 04:38:13,560
NARRATIVES.

7155
04:38:13,560 --> 04:38:14,880
THEY HAD TO LITERALLY WRITE

7156
04:38:14,880 --> 04:38:16,640
THEMSELVES INTO HUMANITY.

7157
04:38:16,640 --> 04:38:20,800
ALSO IN TERMS OF DISABILITY AND

7158
04:38:20,800 --> 04:38:23,080
RACE, IT'S ALSO THAT, YOU KNOW,

7159
04:38:23,080 --> 04:38:24,000
BECAUSE OF THIS HISTORIC

7160
04:38:24,000 --> 04:38:30,760
SYSTEMIC RACE INCH  AND -- RACIM

7161
04:38:30,760 --> 04:38:32,280
AND REDLINING, DECREASES ACCESS

7162
04:38:32,280 --> 04:38:33,720
TO HEALTHY FOOD, MAKES THEM MORE

7163
04:38:33,720 --> 04:38:36,480
LIKELY TO BE EXPOSED TO

7164
04:38:36,480 --> 04:38:37,960
POLLUTANTS, THEY ARE MORE LIKELY

7165
04:38:37,960 --> 04:38:43,680
TO BE DISABLED OR TO HAVE

7166
04:38:43,680 --> 04:38:44,760
DISABILITY EXACERBATED BECAUSE

7167
04:38:44,760 --> 04:38:46,640
OF BASICALLY RACISM AND NATURAL

7168
04:38:46,640 --> 04:38:50,920
AND PHYSICAL AND BUILT

7169
04:38:50,920 --> 04:38:59,000
ENVIRONMENT. 

7170
04:38:59,000 --> 04:39:03,040
 

7171
04:39:03,040 --> 04:39:08,720
>>THANK YOU FOR THE GREAT

7172
04:39:08,720 --> 04:39:09,120
COMMENTS.

7173
04:39:09,120 --> 04:39:13,720
DENA GASSNER, YOUR HAND IS UP.

7174
04:39:13,720 --> 04:39:14,520
>>THANK YOU.

7175
04:39:14,520 --> 04:39:24,960
>>I WANTED TO THANK
EVERYBODY.

7176
04:39:24,960 --> 04:39:31,160
I DO WANT TO HIGHLIGHT ONE THING

7177
04:39:31,160 --> 04:39:32,680
THAT WAS MISSED TWICE TODAY.

7178
04:39:32,680 --> 04:39:33,800
WE DIDN'T DISCUSS IT THIS

7179
04:39:33,800 --> 04:39:35,560
MORNING, NEED TO DISCUSS IT NOW.

7180
04:39:35,560 --> 04:39:37,920
THAT IS THAT THE PREVALENCE

7181
04:39:37,920 --> 04:39:39,400
RATES OF IDENTIFICATION OF GIRLS

7182
04:39:39,400 --> 04:39:42,160
ON THE AUTISM SPECTRUM IS THE

7183
04:39:42,160 --> 04:39:43,560
MOST MARGINALIZED SUBSET OF

7184
04:39:43,560 --> 04:39:44,880
AUTISTIC PEOPLE.

7185
04:39:44,880 --> 04:39:47,360
AND THEN WHEN YOU ADD MULTIPLE

7186
04:39:47,360 --> 04:39:48,480
MARGINALIZATIONS THAT INCLUDE

7187
04:39:48,480 --> 04:39:55,800
RACE OR ETHNIC DIFFERENCES ON

7188
04:39:55,800 --> 04:40:00,000
TOP OF THAT, IN DUE RESPECT WHEN

7189
04:40:00,000 --> 04:40:00,880
WE'RE NOT INTENTIONALLY

7190
04:40:00,880 --> 04:40:02,400
RECRUITING GIRLS WHEN WE HAVE A

7191
04:40:02,400 --> 04:40:03,600
LOW SAMPLE SIZE DOES A

7192
04:40:03,600 --> 04:40:05,360
DISSERVICE TO THE ENTIRETY OF

7193
04:40:05,360 --> 04:40:07,360
THE COMMUNITY, SUGGESTING

7194
04:40:07,360 --> 04:40:08,640
AUTISTIC GIRLS AND WOMEN AND

7195
04:40:08,640 --> 04:40:18,520
SOME STUDIES WE LOOKED AT TODAY

7196
04:40:18,520 --> 04:40:22,880
WOMEN OF COLOR, IT'S AN ERASURE

7197
04:40:22,880 --> 04:40:24,400
AND DOESN'T CONSIDER WHAT'S ON

7198
04:40:24,400 --> 04:40:26,000
THE BACK OF THESE AUTISTIC

7199
04:40:26,000 --> 04:40:26,200
WOMEN.

7200
04:40:26,200 --> 04:40:30,600
I WANT TO SAY THAT WE -- YOU

7201
04:40:30,600 --> 04:40:32,400
KNOW, THESE NUMBERS ARE REALLY

7202
04:40:32,400 --> 04:40:34,240
DOING A DISSERVICE TO THE IDEA

7203
04:40:34,240 --> 04:40:35,840
THAT WE CAN INTENTIONALLY

7204
04:40:35,840 --> 04:40:38,280
RECRUIT AND FIND AUTISTIC WOMEN

7205
04:40:38,280 --> 04:40:39,840
TO STUDY.

7206
04:40:39,840 --> 04:40:41,760
WE HAVE GATE KEEPERS WHO HAVE

7207
04:40:41,760 --> 04:40:43,680
ACCESS TO OUR COMMUNITY ALL THE

7208
04:40:43,680 --> 04:40:45,120
TOP PEOPLE RIGHT HERE ON THE

7209
04:40:45,120 --> 04:40:45,680
SCREEN.

7210
04:40:45,680 --> 04:40:49,320
AND SO IF WE NEED TO FIND PEOPLE

7211
04:40:49,320 --> 04:40:53,720
WHO MEET THAT CRITERIA AS A

7212
04:40:53,720 --> 04:40:54,720
MARGINALIZED WOMAN WE HAVE

7213
04:40:54,720 --> 04:40:58,120
NETWORKS AND NEED TO TEACH

7214
04:40:58,120 --> 04:40:59,600
RESEARCHERS HOW TO CAPITALIZE ON

7215
04:40:59,600 --> 04:41:00,160
THEM.

7216
04:41:00,160 --> 04:41:01,920
I WANT TO EMPHASIZE, IF YOU

7217
04:41:01,920 --> 04:41:05,000
WILL, THE ROLE OF ADMINISTRATIVE

7218
04:41:05,000 --> 04:41:07,800
BURDEN THAT IS LAYERED ON TOP OF

7219
04:41:07,800 --> 04:41:08,800
ACCESSING SERVICES FOR THE

7220
04:41:08,800 --> 04:41:11,320
ENTIRETY OF THE COMMUNITY BUT,

7221
04:41:11,320 --> 04:41:12,640
AGAIN, IS MORE COMPLICATED WHEN

7222
04:41:12,640 --> 04:41:22,160
ENGLISH IS NOT YOUR FIRST

7223
04:41:22,160 --> 04:41:25,040
LANGUAGE, SYSTEMS THAT ARE

7224
04:41:25,040 --> 04:41:27,920
ALMOST DISBELIEF THAT PEOPLE ARE

7225
04:41:27,920 --> 04:41:30,160
CONNING THEM OUT OF MONEY LIKE

7226
04:41:30,160 --> 04:41:31,760
IT'S THEIR ONLY PERSONAL MONEY

7227
04:41:31,760 --> 04:41:33,560
INSTEAD OF GIVING ACCESS TO

7228
04:41:33,560 --> 04:41:35,440
AMOUNT OF MONEY AND RESOURCES

7229
04:41:35,440 --> 04:41:36,560
THEY NEED TO LIVE.

7230
04:41:36,560 --> 04:41:39,280
PEOPLE IN POVERTY HAD A 20-YEAR

7231
04:41:39,280 --> 04:41:42,000
SHORTER LIFE EXPECTANCY AND MANY

7232
04:41:42,000 --> 04:41:43,800
AUTISTIC PEOPLE AS LYDIA POINTED

7233
04:41:43,800 --> 04:41:46,720
OUT ARE LIVING AT THE BRINK OR

7234
04:41:46,720 --> 04:41:48,040
BELOW THE FEDERAL POVERTY LINE

7235
04:41:48,040 --> 04:41:49,240
AT ALL TIMES.

7236
04:41:49,240 --> 04:41:53,280
WE JUST HAVE GOT TO DO BETTER,

7237
04:41:53,280 --> 04:41:55,400
I'M PREACHING TO THE CHOIR BUT I

7238
04:41:55,400 --> 04:41:56,720
WAS DISTRESSED WE DIDN'T TALK

7239
04:41:56,720 --> 04:42:04,840
ABOUT THE RATES ON FEMALES.

7240
04:42:04,840 --> 04:42:05,920
THANK YOU.

7241
04:42:05,920 --> 04:42:12,920
ANY RESPONSES OR COMMENTS ON

7242
04:42:12,920 --> 04:42:13,120
THAT?

7243
04:42:13,120 --> 04:42:13,800
>>THIS IS LYDIA.

7244
04:42:13,800 --> 04:42:15,560
I'D BE HAPPY TO SHARE RESOURCES

7245
04:42:15,560 --> 04:42:17,840
ON GENDER AND RACIAL DISPARITIES

7246
04:42:17,840 --> 04:42:19,240
AND AUTISTIC PEOPLE AS WELL.

7247
04:42:19,240 --> 04:42:26,720
SO THANK YOU FOR RAISING THAT,

7248
04:42:26,720 --> 04:42:26,920
DENA.

7249
04:42:26,920 --> 04:42:28,040
>>I RUN PSYCHIATRIC
HOSPITALS

7250
04:42:28,040 --> 04:42:29,040
IN MY DAY JOB.

7251
04:42:29,040 --> 04:42:31,320
THE NUMBER OF FEMALES THAT I GET

7252
04:42:31,320 --> 04:42:36,680
THROUGH THE DOOR THAT DO NOT

7253
04:42:36,680 --> 04:42:38,360
HAVE A FORMAL DIAGNOSIS AND

7254
04:42:38,360 --> 04:42:42,560
EVERYTHING BUT THE KITCHEN  SINK

7255
04:42:42,560 --> 04:42:44,360
IS ALARMING, WE NEED TO DO A

7256
04:42:44,360 --> 04:42:49,200
WHOLE TREMENDOUS AMOUNT OF WORK

7257
04:42:49,200 --> 04:42:49,840
ON THAT PARTICULAR ISSUE.

7258
04:42:49,840 --> 04:42:50,920
>>THANK YOU.

7259
04:42:50,920 --> 04:42:54,720
I'M A SOCIAL WORKER BY TRAINING.

7260
04:42:54,720 --> 04:42:58,560
IN MY DAY JOB I RUN AN ADULT

7261
04:42:58,560 --> 04:43:01,640
SUPPORT GROUP, LAST MONTH WE HAD

7262
04:43:01,640 --> 04:43:03,160
35 WOMEN ATTEND, ONE DIAGNOSED

7263
04:43:03,160 --> 04:43:05,720
BEFORE AGE 3, ONE DIAGNOSED

7264
04:43:05,720 --> 04:43:06,440
BEFORE AGE 30.

7265
04:43:06,440 --> 04:43:09,320
EVERYBODY ELSE WAS IN THEIR LATE

7266
04:43:09,320 --> 04:43:11,160
30s OR 40s OR 50s OR

7267
04:43:11,160 --> 04:43:11,760
60s.

7268
04:43:11,760 --> 04:43:13,680
I REALIZED THERE WAS NO

7269
04:43:13,680 --> 04:43:14,680
DIAGNOSIS AVAILABLE TO THAT

7270
04:43:14,680 --> 04:43:16,200
SEGMENT OF THE POPULATION BUT

7271
04:43:16,200 --> 04:43:17,840
WE'RE DOING THE SAME INJUSTICE

7272
04:43:17,840 --> 04:43:19,520
TO THE NEW AND YOUNGER PEOPLE

7273
04:43:19,520 --> 04:43:22,240
THAT ARE COMING ABOARD.

7274
04:43:22,240 --> 04:43:24,520
SO THANKS FOR AFFIRMING DR.

7275
04:43:24,520 --> 04:43:26,040
HERNANDEZ THAT IN THE COMMUNITY

7276
04:43:26,040 --> 04:43:33,840
WE KNOW THAT NUMBER CAN'T BE

7277
04:43:33,840 --> 04:43:34,080
ACCURATE.

7278
04:43:34,080 --> 04:43:35,120
>>JUST TO UNDERSCORE THE
POINT

7279
04:43:35,120 --> 04:43:36,800
I HAD A BLACK MOTHER OF AN

7280
04:43:36,800 --> 04:43:38,000
AUTISTIC GIRL REACH OUT TO ME

7281
04:43:38,000 --> 04:43:43,360
AND ASK ME TO SEND HER RESEARCH,

7282
04:43:43,360 --> 04:43:45,880
BLACK WOMEN OR GIRLS THAT WERE

7283
04:43:45,880 --> 04:43:47,520
AUTISTIC, I COULDN'T POINT TO

7284
04:43:47,520 --> 04:43:49,160
ANY, THERE HAVE BEEN ONE OR TWO

7285
04:43:49,160 --> 04:43:57,160
SMALL SCALE STUDIES BUT NOT A

7286
04:43:57,160 --> 04:43:57,320
LOT.

7287
04:43:57,320 --> 04:44:00,320
>>THERE'S NO EXCUSE FOR A

7288
04:44:00,320 --> 04:44:02,400
DISPARITY BECAUSE SOME OF THE

7289
04:44:02,400 --> 04:44:06,440
RESEARCH ON AUTISM, EARLY

7290
04:44:06,440 --> 04:44:11,040
RESEARCH ON AUTISM, MOST FAMOUS

7291
04:44:11,040 --> 04:44:15,720
BOOK WERE WRITTEN BY WOMEN,

7292
04:44:15,720 --> 04:44:17,360
JESSIE CLAIBORNE, HER MOTHER

7293
04:44:17,360 --> 04:44:21,200
WROTE TWO BOOKS WITH RAISING HER

7294
04:44:21,200 --> 04:44:26,360
DAUGHTER WITH AUTISM, TEMPLE

7295
04:44:26,360 --> 04:44:28,560
GRANDEN, DONNA WILLIAMS, WILLFUL

7296
04:44:28,560 --> 04:44:32,040
BLINDNESS TO NOT SEE WOMEN CAN

7297
04:44:32,040 --> 04:44:32,560
OBVIOUSLY HAVE AUTISM.

7298
04:44:32,560 --> 04:44:37,000
>>I CAN SPEAK FROM A
CULTURAL

7299
04:44:37,000 --> 04:44:38,680
STANDPOINT, IN THE BLACK

7300
04:44:38,680 --> 04:44:39,640
COMMUNITY, IT'S DIFFICULT FOR

7301
04:44:39,640 --> 04:44:42,480
FAMILIES TO COME TO TERMS WITH

7302
04:44:42,480 --> 04:44:44,720
THEIR DAUGHTERS POSSIBLY BEING

7303
04:44:44,720 --> 04:44:45,760
DIFFERENT BECAUSE IN THE BLACK

7304
04:44:45,760 --> 04:44:47,960
COMMUNITY THE BLACK WOMAN IS THE

7305
04:44:47,960 --> 04:44:48,920
ROOTS TO THE TREE.

7306
04:44:48,920 --> 04:44:53,760
SHE'S SUPPOSED TO BE ABLE TO DO

7307
04:44:53,760 --> 04:44:54,520
EVERYTHING AND ANYTHING.

7308
04:44:54,520 --> 04:44:57,520
AND FROM THE TIME WE'RE BORN

7309
04:44:57,520 --> 04:44:59,600
WE'RE GROOMED TO DO ANYTHING AND

7310
04:44:59,600 --> 04:44:59,880
EVERYTHING.

7311
04:44:59,880 --> 04:45:03,640
I THINK IT'S JUST A CULTURAL

7312
04:45:03,640 --> 04:45:05,440
THINK, AT LEAST FOR BLACK

7313
04:45:05,440 --> 04:45:07,600
FAMILIES, AND I THINK THAT'S THE

7314
04:45:07,600 --> 04:45:18,120
PROBLEM THAT WE DON'T TALK ABOUT

7315
04:45:19,760 --> 04:45:20,160
IT ENOUGH.

7316
04:45:20,160 --> 04:45:22,880
IF WE DO IT, WE'LL GET THOSE

7317
04:45:22,880 --> 04:45:24,040
UNICORNS, BUT IT'S A COMMUNITY

7318
04:45:24,040 --> 04:45:25,600
EFFORT IN REGARDS TO MAKING

7319
04:45:25,600 --> 04:45:29,000
THESE COMMUNITIES OF COLOR FEEL

7320
04:45:29,000 --> 04:45:30,440
COMFORTABLE ENOUGH IN SAYING WHO

7321
04:45:30,440 --> 04:45:31,000
THEIR CHILDREN ARE.

7322
04:45:31,000 --> 04:45:34,120
SO ONE OF THE THINGS THAT WE DO

7323
04:45:34,120 --> 04:45:36,680
IN OUR TRAINING IS THAT WE BRING

7324
04:45:36,680 --> 04:45:40,640
IN PEOPLE OF COLOR, WE BRING IN

7325
04:45:40,640 --> 04:45:43,040
BLACK FACILITATORS, SO THAT OUR

7326
04:45:43,040 --> 04:45:44,760
PARENTS AREN'T CLOSED OFF, THEY

7327
04:45:44,760 --> 04:45:46,320
BECOME RELAXED WITH THEM AND

7328
04:45:46,320 --> 04:45:49,320
THEY ASK THE RIGHT QUESTIONS.

7329
04:45:49,320 --> 04:45:51,920
AND FROM THAT, THEY GAIN A SENSE

7330
04:45:51,920 --> 04:45:52,760
OF EMPOWERMENT.

7331
04:45:52,760 --> 04:45:53,960
THEY SEE THERE'S PROVIDERS THAT

7332
04:45:53,960 --> 04:45:56,280
CAN SERVICE THEM THAT LOOK LIKE

7333
04:45:56,280 --> 04:45:57,800
THEM THAT ARE OUT THERE

7334
04:45:57,800 --> 04:46:00,320
SOMEWHERE, AND THEY ALSO HAVE A

7335
04:46:00,320 --> 04:46:03,160
COMMUNITY IN THESE CLASSES THAT

7336
04:46:03,160 --> 04:46:04,400
WE HAVE AND FACILITATE ON

7337
04:46:04,400 --> 04:46:04,920
SATURDAYS.

7338
04:46:04,920 --> 04:46:06,120
THEY HAVE A COMMUNITY OF PEOPLE

7339
04:46:06,120 --> 04:46:08,520
SO THEY KNOW THEY ARE NOT ALONE.

7340
04:46:08,520 --> 04:46:10,480
AND WE ALSO BRING IN

7341
04:46:10,480 --> 04:46:10,840
SELF-ADVOCATES.

7342
04:46:10,840 --> 04:46:14,440
MOST OF THE TIME IT'S A FEMALE

7343
04:46:14,440 --> 04:46:15,560
SELF-ADVOCATE WHO IS TALKING

7344
04:46:15,560 --> 04:46:17,160
ABOUT HER EXPERIENCE.

7345
04:46:17,160 --> 04:46:19,080
WE DO THAT PURPOSEFULLY BECAUSE

7346
04:46:19,080 --> 04:46:20,680
LATELY WE HAVE A LOT OF PARENTS

7347
04:46:20,680 --> 04:46:24,360
IN OUR GROUPS WHO HAVE YOUNG

7348
04:46:24,360 --> 04:46:24,720
WOMEN.

7349
04:46:24,720 --> 04:46:26,680
SO, I JUST WANTED TO BRING THIS

7350
04:46:26,680 --> 04:46:29,080
UP BECAUSE WE ARE ADDRESSING

7351
04:46:29,080 --> 04:46:31,960
THAT PARTICULAR ISSUE, BUT YOU

7352
04:46:31,960 --> 04:46:33,360
HAVE TO UNDERSTAND EVERYTHING

7353
04:46:33,360 --> 04:46:35,200
TAKES TIME AND YOU HAVE TO GIVE

7354
04:46:35,200 --> 04:46:36,840
THE COMMUNITY COMFORTABLE -- GET

7355
04:46:36,840 --> 04:46:37,640
THE COMMUNITY COMFORTABLE FIRST

7356
04:46:37,640 --> 04:46:39,600
WHO THEY ARE AND WHO THEIR CHILD

7357
04:46:39,600 --> 04:46:41,880
IS BEFORE YOU CAN REALLY MAKE

7358
04:46:41,880 --> 04:46:44,200
ANY SIGNIFICANT CHANGES FOR THE

7359
04:46:44,200 --> 04:46:44,840
FUTURE.

7360
04:46:44,840 --> 04:46:48,240
OR YOU'LL CONTINUE TO HAVE THAT

7361
04:46:48,240 --> 04:46:55,360
OLDER SELF-ADVOCATE THAT'S 20

7362
04:46:55,360 --> 04:46:55,600
AND UP.

7363
04:46:55,600 --> 04:46:58,000
>>IF I COULD BUILD ON
THAT IN

7364
04:46:58,000 --> 04:47:00,720
THE LATINO COMMUNITY WHETHER WE

7365
04:47:00,720 --> 04:47:03,280
DO A LOT OF RESEARCH WITH A

7366
04:47:03,280 --> 04:47:06,320
LARGE NUMBER OF LATINO FAMILIES,

7367
04:47:06,320 --> 04:47:07,960
WE DO SEE FAMILIES WITH GIRLS

7368
04:47:07,960 --> 04:47:09,480
WITH AUTISM, BUT OFTEN WE SEE

7369
04:47:09,480 --> 04:47:11,720
THE SAME PROPORTION IN THE

7370
04:47:11,720 --> 04:47:15,400
GENERAL, IN THE WHITE OR

7371
04:47:15,400 --> 04:47:16,000
WHATEVER POPULATION RESEARCH.

7372
04:47:16,000 --> 04:47:19,240
AND SO I THINK IT GOES EVEN

7373
04:47:19,240 --> 04:47:20,880
DEEPER THAN CULTURE, GOES TO THE

7374
04:47:20,880 --> 04:47:24,440
CULTURE OF OUR SOCIETY, RIGHT?

7375
04:47:24,440 --> 04:47:27,840
BECAUSE I THINK GIRLS ARE TAUGHT

7376
04:47:27,840 --> 04:47:29,400
TO INTERNALIZE THEIR PROBLEMS,

7377
04:47:29,400 --> 04:47:32,640
AND A LOT OF TIMES -- I HAVE TWO

7378
04:47:32,640 --> 04:47:36,480
KIDS WITH ADHD, A GIRL AND BOY.

7379
04:47:36,480 --> 04:47:40,600
THE GIRL, HER ADHD WASN'T

7380
04:47:40,600 --> 04:47:42,560
RECOGNIZED UNTIL LATER, DOESN'T

7381
04:47:42,560 --> 04:47:43,600
EXHIBIT AS BEHAVIORAL

7382
04:47:43,600 --> 04:47:45,200
CHALLENGES, MAYBE IT DID MY SON,

7383
04:47:45,200 --> 04:47:45,760
RIGHT?

7384
04:47:45,760 --> 04:47:48,280
YOU HAVE A SIMILAR PATTERN IN

7385
04:47:48,280 --> 04:47:49,920
SOCIETY WHERE GIRLS ARE TAUGHT

7386
04:47:49,920 --> 04:47:50,680
TO INTERNALIZE, MAYBE IF THEY

7387
04:47:50,680 --> 04:47:53,760
HAVE SOME SORT OF MELTDOWN

7388
04:47:53,760 --> 04:47:55,040
RELATED TO SENSORY ISSUES OR

7389
04:47:55,040 --> 04:48:00,720
WHATEVER IT MIGHT GET

7390
04:48:00,720 --> 04:48:01,720
INTERPRETED DIFFERENTLY, RIGHT?

7391
04:48:01,720 --> 04:48:03,840
SO IT'S A SOCIETAL PROBLEM THAT

7392
04:48:03,840 --> 04:48:08,800
KIND OF REPLICATES IN DIFFERENT

7393
04:48:08,800 --> 04:48:09,280
COMMUNITIES AS WELL.

7394
04:48:09,280 --> 04:48:11,200
>>I WOULD LIKE TO
HIGHLIGHT

7395
04:48:11,200 --> 04:48:11,840
SOMETHING SAID THROUGHOUT THE

7396
04:48:11,840 --> 04:48:17,520
DAY, WHO IS IN THE ROOM WHEN WE

7397
04:48:17,520 --> 04:48:18,280
ARE CREATING THESE INSTRUMENTS,

7398
04:48:18,280 --> 04:48:19,720
WHO IS IN THE ROOM?

7399
04:48:19,720 --> 04:48:21,760
OFTENTIMES IT'S NOT PEOPLE THAT

7400
04:48:21,760 --> 04:48:30,040
LOOK LIKE THOSE ON THIS PANEL.

7401
04:48:30,040 --> 04:48:37,440
>>I WONDER WHO IS THE 
ONUS

7402
04:48:37,440 --> 04:48:40,840
BEING PUT ON TO BE DIAGNOSED AND

7403
04:48:40,840 --> 04:48:41,120
RECOGNIZED?

7404
04:48:41,120 --> 04:48:42,320
THE IDEA GIRLS AREN'T DIAGNOSED

7405
04:48:42,320 --> 04:48:45,120
BECAUSE THEY ARE SOMEHOW HIDING,

7406
04:48:45,120 --> 04:48:46,560
ISN'T THE DOCTOR'S JOB TO

7407
04:48:46,560 --> 04:48:47,840
ASCERTAIN THAT?

7408
04:48:47,840 --> 04:48:49,920
I MEAN, IT'S NOT THE PATIENT'S

7409
04:48:49,920 --> 04:48:51,440
JOB TO SAY, THIS IS WHAT'S WRONG

7410
04:48:51,440 --> 04:48:53,760
WITH ME, IT'S THE DOCTOR'S JOB.

7411
04:48:53,760 --> 04:49:02,640
IT'S LIKE BLAMING THE PATIENT..

7412
04:49:02,640 --> 04:49:03,360
WAIT A SECOND, WHOSE

7413
04:49:03,360 --> 04:49:04,920
RESPONSIBILITY IS IT TO SEE THIS

7414
04:49:04,920 --> 04:49:07,000
PERSON HAS AUTISM, EVEN IF THEY

7415
04:49:07,000 --> 04:49:08,280
DON'T FIT WHATEVER PROFILE I

7416
04:49:08,280 --> 04:49:09,480
HAVE IN MY HEAD.

7417
04:49:09,480 --> 04:49:12,920
ISN'T THAT THE DOCTOR'S JOB?

7418
04:49:12,920 --> 04:49:14,480
I'M INTERESTED, WHO WE'RE

7419
04:49:14,480 --> 04:49:16,120
BLAMING AND WHO HAS

7420
04:49:16,120 --> 04:49:17,840
RESPONSIBILITY.

7421
04:49:17,840 --> 04:49:18,800
I FIND THAT CURIOUS.

7422
04:49:18,800 --> 04:49:19,960
>>SO I'M NOT NECESSARILY

7423
04:49:19,960 --> 04:49:23,440
BLAMING ANYBODY BUT I DO KNOW

7424
04:49:23,440 --> 04:49:24,200
CULTURALLY IT'S DIFFICULT.

7425
04:49:24,200 --> 04:49:26,200
I TALK TO PARENTS WHO HAVE

7426
04:49:26,200 --> 04:49:29,440
FOUGHT TOOTH AND NAIL AGAINST A

7427
04:49:29,440 --> 04:49:30,440
DIAGNOSIS FOR THEIR DAUGHTER.

7428
04:49:30,440 --> 04:49:32,200
JUST TOOTH AND NAIL FOR A

7429
04:49:32,200 --> 04:49:34,600
DIAGNOSIS FOR THEIR CHILD,

7430
04:49:34,600 --> 04:49:35,240
PERIOD.

7431
04:49:35,240 --> 04:49:38,080
AND SO WHEN I SAY THAT PARENTS

7432
04:49:38,080 --> 04:49:40,840
NEED TO EMBRACE -- I DON'T KNOW

7433
04:49:40,840 --> 04:49:42,000
WHAT AN AUTISTIC ADULT GOES

7434
04:49:42,000 --> 04:49:45,200
THROUGH BUT WHAT I DO KNOW THAT

7435
04:49:45,200 --> 04:49:46,400
THESE AUTISTIC CHILDREN ARE

7436
04:49:46,400 --> 04:49:50,680
BEING PUSHED TO THE SIDE BECAUSE

7437
04:49:50,680 --> 04:49:52,400
OF THEIR PARENTS.

7438
04:49:52,400 --> 04:49:53,840
THEIR PARENTS' VIEWS.

7439
04:49:53,840 --> 04:49:57,000
AND WE TRY TO EDUCATE PARENTS SO

7440
04:49:57,000 --> 04:50:01,280
THEY BETTER UNDERSTAND WHY IT'S

7441
04:50:01,280 --> 04:50:02,280
IMPORTANT TO BE IDENTIFIED, TO

7442
04:50:02,280 --> 04:50:03,680
GET A DIAGNOSIS AND SUPPORT

7443
04:50:03,680 --> 04:50:07,480
THEIR CHILDREN THE RIGHT WAY. 

7444
04:50:07,480 --> 04:50:10,280
SO WHEN I TALK ABOUT -- WHEN I

7445
04:50:10,280 --> 04:50:13,200
SAY THIS IT'S NOT TO BLAME THE

7446
04:50:13,200 --> 04:50:18,360
VICTIM BECAUSE THE VICTIM,

7447
04:50:18,360 --> 04:50:20,680
THERE'S BEEN VICTIMIZATION

7448
04:50:20,680 --> 04:50:25,800
THROUGH SYSTEMIC RACISM, THAT'S

7449
04:50:25,800 --> 04:50:27,560
WHAT'S CONDITIONED BLACK PEOPLE,

7450
04:50:27,560 --> 04:50:36,720
MY CULTURE, TO NOT EMBRACE

7451
04:50:36,720 --> 04:50:38,040
MENTAL HEALTH ISSUES, SOMETIMES

7452
04:50:38,040 --> 04:50:39,560
EVEN DIABETES, THEY WILL KEEP

7453
04:50:39,560 --> 04:50:39,880
EATING CANDY.

7454
04:50:39,880 --> 04:50:41,840
IT'S JUST A THING.

7455
04:50:41,840 --> 04:50:44,280
WE'RE HERE TODAY TO, NUMBER ONE,

7456
04:50:44,280 --> 04:50:46,600
GET MORE RESOURCES FOR OUR

7457
04:50:46,600 --> 04:50:52,840
COMMUNITIES, RESPECTIVE

7458
04:50:52,840 --> 04:50:54,920
COMMUNITIES, AND NUMBER TWO, END

7459
04:50:54,920 --> 04:50:55,480
STIGMATIZATION OF AUTISM.

7460
04:50:55,480 --> 04:50:57,760
>>I WASN'T REFERRING TO
YOU.

7461
04:50:57,760 --> 04:50:59,200
I'M NOT SAYING YOU'RE BLAMING

7462
04:50:59,200 --> 04:50:59,840
THE VICTIM.

7463
04:50:59,840 --> 04:51:02,560
>>I KNOW BUT I WANT TO
MAKE

7464
04:51:02,560 --> 04:51:03,760
THAT POINT.

7465
04:51:03,760 --> 04:51:05,000
I TOTALLY GET WHAT YOU'RE

7466
04:51:05,000 --> 04:51:05,280
SAYING.

7467
04:51:05,280 --> 04:51:06,960
YOU MAKE WONDERFUL POINTS.

7468
04:51:06,960 --> 04:51:08,240
I GET IT.

7469
04:51:08,240 --> 04:51:10,240
BUT THERE'S OTHERS OUT THERE WHO

7470
04:51:10,240 --> 04:51:13,200
ARE WATCHING THIS, I WANT TO

7471
04:51:13,200 --> 04:51:15,480
JUST BE CLEAR ON, YOU KNOW, THE

7472
04:51:15,480 --> 04:51:17,360
HURDLES THAT THESE COMMUNITIES

7473
04:51:17,360 --> 04:51:20,200
OF COLOR HAVE TO CLEAR.

7474
04:51:20,200 --> 04:51:21,160
DR. HERNANDEZ CAN SAY JUST WHAT

7475
04:51:21,160 --> 04:51:23,120
I SAID.

7476
04:51:23,120 --> 04:51:25,000
THEY HAVE TO CLEAR THESE HURDLES

7477
04:51:25,000 --> 04:51:27,120
BECAUSE YOU'RE TELLING THEM, OH,

7478
04:51:27,120 --> 04:51:32,360
HE OR SHE IS DOING SOMETHING

7479
04:51:32,360 --> 04:51:33,560
THAT IS PRESENTING AS AUTISTIC.

7480
04:51:33,560 --> 04:51:37,800
AND THAT PARENT WILL TELL YOU,

7481
04:51:37,800 --> 04:51:39,200
NO, THEY AREN'T.

7482
04:51:39,200 --> 04:51:42,760
AND A DOCTOR, TO BE HONEST, A

7483
04:51:42,760 --> 04:51:43,840
DOCTOR CAN'T MAKE A PARENT

7484
04:51:43,840 --> 04:51:45,400
ACCEPT A DIAGNOSIS.

7485
04:51:45,400 --> 04:51:47,560
THAT'S THE ONLY THING I WANTED

7486
04:51:47,560 --> 04:51:49,240
TO -- DR. HERNANDEZ MIGHT BE

7487
04:51:49,240 --> 04:51:52,040
ABLE TO SPEAK ON THAT MORE.

7488
04:51:52,040 --> 04:51:52,600
>>ABSOLUTELY.

7489
04:51:52,600 --> 04:51:55,120
I THINK IT'S A COUPLE THINGS.

7490
04:51:55,120 --> 04:51:59,280
ONE, IT'S A PERFECT STORM.

7491
04:51:59,280 --> 04:52:01,840
IT'S ALSO -- MY OWN JOURNEY,

7492
04:52:01,840 --> 04:52:05,120
IT'S ALSO ACCEPTING AND GOING

7493
04:52:05,120 --> 04:52:06,320
THROUGH THE PROCESS BECAUSE I

7494
04:52:06,320 --> 04:52:07,640
WAKE UP EVERY DAY KNOWING WHO I

7495
04:52:07,640 --> 04:52:10,040
AM IN TERMS OF WHAT COLOR I AM,

7496
04:52:10,040 --> 04:52:12,320
MY POSITION BASED OFF THAT IN

7497
04:52:12,320 --> 04:52:12,520
LIFE.

7498
04:52:12,520 --> 04:52:14,600
IN MY SON I THINK ABOUT, GOSH,

7499
04:52:14,600 --> 04:52:16,240
HE'S ALREADY GOING TO STRUGGLE,

7500
04:52:16,240 --> 04:52:17,800
THEY ARE GOING TO JUDGE HIM.

7501
04:52:17,800 --> 04:52:20,000
OH MY GOSH.

7502
04:52:20,000 --> 04:52:20,960
IT'S AN EVERYDAY THING, IT'S

7503
04:52:20,960 --> 04:52:22,840
HARD WHEN I TALK TO OTHER

7504
04:52:22,840 --> 04:52:28,200
PARENTS WILL THIS JOURNEY AND A

7505
04:52:28,200 --> 04:52:30,720
LOT OF MIXED EMOTION, SOME ARE

7506
04:52:30,720 --> 04:52:32,280
ANGRY, CRYING, GRIEVING, IT'S SO

7507
04:52:32,280 --> 04:52:34,680
DIFFERENT FOR SO MANY PEOPLE BUT

7508
04:52:34,680 --> 04:52:35,880
KNOWING WHAT I KNOW AND KNOWING

7509
04:52:35,880 --> 04:52:38,360
THE FOLKS I'VE TALKED TO IT'S

7510
04:52:38,360 --> 04:52:40,920
REALLY HARD TO SOMETIMES WANT

7511
04:52:40,920 --> 04:52:42,640
THAT SPOTLIGHT WHEN YOU ALREADY

7512
04:52:42,640 --> 04:52:44,280
FEEL THAT SPOTLIGHT OF JUDGMENT.

7513
04:52:44,280 --> 04:52:45,960
IT'S NOT SOMETHING TO BE JUDGED.

7514
04:52:45,960 --> 04:52:47,600
I'M NOT SAYING THAT.

7515
04:52:47,600 --> 04:52:51,760
I'M SAYING THAT'S HOW I FELT,

7516
04:52:51,760 --> 04:52:53,040
ESPECIALLY EARLY ON, IS MY SON'S

7517
04:52:53,040 --> 04:52:54,240
ALREADY GOING TO FACE THE WORLD

7518
04:52:54,240 --> 04:52:56,520
OF CHALLENGES BECAUSE OF WHO HE

7519
04:52:56,520 --> 04:52:57,880
IS IN TERMS OF HIS COLOR AND

7520
04:52:57,880 --> 04:52:59,960
WHERE HE COMES FROM.

7521
04:52:59,960 --> 04:53:01,280
NOW ADDITIONAL LAYER IN I

7522
04:53:01,280 --> 04:53:03,000
ACKNOWLEDGE AND ACCEPT THIS AND

7523
04:53:03,000 --> 04:53:04,720
THIS IS HIS PATH FORWARD.

7524
04:53:04,720 --> 04:53:07,920
IT TOOK A LOT OF EMOTIONAL WORK

7525
04:53:07,920 --> 04:53:10,480
TO GET OVER MY OWN MIND AND TO

7526
04:53:10,480 --> 04:53:12,640
FIGHT BUT THERE'S NEVER A DAY

7527
04:53:12,640 --> 04:53:19,200
THAT GOES BY WHERE SOMEBODY

7528
04:53:19,200 --> 04:53:19,920
ISN'T JUDGING.

7529
04:53:19,920 --> 04:53:22,280
>>I HAD THIS CONVERSATION
WITH

7530
04:53:22,280 --> 04:53:24,480
MY STUDENTS LAST NIGHT, MANY

7531
04:53:24,480 --> 04:53:26,560
DISABLED ADULTS GO THROUGH THIS

7532
04:53:26,560 --> 04:53:27,560
AS WELL.

7533
04:53:27,560 --> 04:53:30,480
REALIZING THAT IF YOU HAVE NOT

7534
04:53:30,480 --> 04:53:33,320
HAD ANOTHER DISABILITY CORRECTLY

7535
04:53:33,320 --> 04:53:34,440
IDENTIFIED AND DIAGNOSED

7536
04:53:34,440 --> 04:53:36,640
EARLIER, OR YOU ARE ACQUIRING A

7537
04:53:36,640 --> 04:53:37,840
NEW CONDITION, FOR EXAMPLE,

7538
04:53:37,840 --> 04:53:39,360
ONSET OF AN AUTOIMMUNE DISEASE

7539
04:53:39,360 --> 04:53:41,640
THAT OCCURS LATER IN LIFE, THAT

7540
04:53:41,640 --> 04:53:43,720
MANY PEOPLE STRUGGLE WITH THE

7541
04:53:43,720 --> 04:53:44,600
INTERNALIZED ABLEISM BECAUSE

7542
04:53:44,600 --> 04:53:47,280
THAT'S WHAT THAT BOILS DOWN TO,

7543
04:53:47,280 --> 04:53:49,760
IT'S ABLEISM, IT'S FEAR OF THE

7544
04:53:49,760 --> 04:53:52,280
IMPACT OF ABLEISM OF REALIZING

7545
04:53:52,280 --> 04:53:54,360
THAT THERE IS ANOTHER EXPERIENCE

7546
04:53:54,360 --> 04:53:57,000
YOU HAVE THAT WILL RESULT IN

7547
04:53:57,000 --> 04:53:59,400
SOCIETAL DISCRIMINATION, AND

7548
04:53:59,400 --> 04:54:01,040
THAT THAT COULD TRANSLATE INTO

7549
04:54:01,040 --> 04:54:05,680
POOR HEALTH OUTCOMES, POOR

7550
04:54:05,680 --> 04:54:08,840
ECONOMIC OUTCOMES, VERY REAL

7551
04:54:08,840 --> 04:54:09,880
CONSEQUENCES.

7552
04:54:09,880 --> 04:54:10,560
FOR THOSE IN MARGINALIZED

7553
04:54:10,560 --> 04:54:11,760
COMMUNITIES THAT TAKES THE FORM

7554
04:54:11,760 --> 04:54:14,080
IF I CAN SHIELD MYSELF FROM

7555
04:54:14,080 --> 04:54:15,840
HAVING TO ACCEPT OR NAME OR

7556
04:54:15,840 --> 04:54:18,800
CLAIM DISABILITY AS PART OF AN

7557
04:54:18,800 --> 04:54:19,960
EXPERIENCE, THEN PERHAPS THAT

7558
04:54:19,960 --> 04:54:21,440
WILL DECREASE THE AMOUNT OF

7559
04:54:21,440 --> 04:54:22,280
PREJUDICE AND DISCRIMINATION

7560
04:54:22,280 --> 04:54:25,800
THAT I OR MY FAMILY MEMBER WILL

7561
04:54:25,800 --> 04:54:26,760
EXPERIENCE.

7562
04:54:26,760 --> 04:54:28,960
AND SO WHEN DISAVOWING

7563
04:54:28,960 --> 04:54:29,840
DISABILITY WE BELIEVE FALSELY

7564
04:54:29,840 --> 04:54:32,560
THAT THAT WILL FREE US FROM OR

7565
04:54:32,560 --> 04:54:35,640
PROTECT US FROM DISCRIMINATION

7566
04:54:35,640 --> 04:54:38,240
WHEN IT'S NOT TRUE, BIOLOGY DOWN

7567
04:54:38,240 --> 04:54:39,520
TO INTERNALIZED ABLEISM AS WELL

7568
04:54:39,520 --> 04:54:43,160
AS FEAR OF THE CONSEQUENCES OF

7569
04:54:43,160 --> 04:54:43,480
ABLEISM.

7570
04:54:43,480 --> 04:54:44,720
WHETHER SOMEBODY ACCEPTS A

7571
04:54:44,720 --> 04:54:45,920
DIAGNOSIS OR NOT, THE DISABILITY

7572
04:54:45,920 --> 04:54:46,720
IS THERE.

7573
04:54:46,720 --> 04:54:48,560
THE ABLEISM WILL BE THERE.

7574
04:54:48,560 --> 04:54:50,440
THE DISCRIMINATION WILL BE

7575
04:54:50,440 --> 04:54:50,640
THERE.

7576
04:54:50,640 --> 04:54:54,040
SO OUR CHARGE HAS TO BE HOW WE

7577
04:54:54,040 --> 04:54:55,480
CAN TRANSFORM OUR SYSTEMS TO

7578
04:54:55,480 --> 04:55:00,400
REDUCE THE HARM OF ABLEISM FROM

7579
04:55:00,400 --> 04:55:01,600
OUR POLICIES AND PRACTICES.

7580
04:55:01,600 --> 04:55:03,000
I KNOW THERE HAVE BEEN SEVERAL

7581
04:55:03,000 --> 04:55:04,560
MEMBERS OF IACC WHO HAVE BEEN

7582
04:55:04,560 --> 04:55:11,080
WAITING TO COMMENT OR ASK

7583
04:55:11,080 --> 04:55:11,360
QUESTIONS.

7584
04:55:11,360 --> 04:55:12,960
>>GREAT DISCUSSION AMONG

7585
04:55:12,960 --> 04:55:13,480
PANELISTS.

7586
04:55:13,480 --> 04:55:22,120
WE WILL TAKE A QUESTION FROM

7587
04:55:22,120 --> 04:55:22,800
SCOTT ROBERTSON.

7588
04:55:22,800 --> 04:55:24,480
>>THANKS, EVERYBODY.

7589
04:55:24,480 --> 04:55:27,000
I FIND IT VERY VALUABLE IN TERMS

7590
04:55:27,000 --> 04:55:30,400
OF THE DISCUSSIONS AND

7591
04:55:30,400 --> 04:55:33,360
PRESENTATION, AND SOCIAL

7592
04:55:33,360 --> 04:55:36,520
JUSTICE-RELATED ISSUES AND

7593
04:55:36,520 --> 04:55:39,640
INTERSECTIONALITY ON RACE AND

7594
04:55:39,640 --> 04:55:40,320
HIT, ALIGNING ON DIVERSITY,

7595
04:55:40,320 --> 04:55:41,320
EQUITY, AND INCLUSION, WHAT

7596
04:55:41,320 --> 04:55:43,320
AGENCIES HAVE BEEN DOING RIGHT

7597
04:55:43,320 --> 04:55:46,160
NOW AND VERY HELPFUL TO HEAR

7598
04:55:46,160 --> 04:55:47,920
MORE INSIGHT FROM RESEARCH

7599
04:55:47,920 --> 04:55:51,200
PRACTICE AND ADVOCACY IN THIS

7600
04:55:51,200 --> 04:55:51,640
SPACE.

7601
04:55:51,640 --> 04:55:52,520
WE'VE MADE A PRIORITY HERE AT

7602
04:55:52,520 --> 04:55:56,560
THE DEPARTMENT OF LABOR ON OUR

7603
04:55:56,560 --> 04:55:58,560
EMPLOYMENT PROJECT FOR AUTISM,

7604
04:55:58,560 --> 04:56:01,360
RESEARCH SUPPORT SERVICES FOR

7605
04:56:01,360 --> 04:56:08,800
EMPLOYMENT OF YOUNG ADULTS ON

7606
04:56:08,800 --> 04:56:11,680
THE AUTISM SPECTRUM.

7607
04:56:11,680 --> 04:56:12,760
ACCESS AND SUPPORT NEEDS

7608
04:56:12,760 --> 04:56:14,000
DIVERSITY THERE.

7609
04:56:14,000 --> 04:56:15,040
WHAT I'M WONDERING ON THE

7610
04:56:15,040 --> 04:56:17,240
WORKFORCE END OF THINGS I KNOW

7611
04:56:17,240 --> 04:56:20,040
THAT IN THE PRESENTATIONS IT

7612
04:56:20,040 --> 04:56:21,000
MENTIONED LACK OF EDUCATOR

7613
04:56:21,000 --> 04:56:24,080
DIVERSITY, LACK OF DIVERSITY IN

7614
04:56:24,080 --> 04:56:26,240
THE WORKFORCE, IN TERMS OF FOR

7615
04:56:26,240 --> 04:56:29,320
SUPPORT AND SERVICES, FOR

7616
04:56:29,320 --> 04:56:30,520
EMPOWERING GREATER ACCESS AND

7617
04:56:30,520 --> 04:56:37,000
SUPPORT NEEDS AND SERVICES

7618
04:56:37,000 --> 04:56:39,600
ACCESS FOR AUTISTIC CHILDREN.

7619
04:56:39,600 --> 04:56:44,680
DO YOU HAVE SUGGESTS ABOUT THE

7620
04:56:44,680 --> 04:56:45,760
WORKFORCE, GOVERNMENT AND

7621
04:56:45,760 --> 04:56:47,160
PARTNERSHIPS AND COLLABORATIONS?

7622
04:56:47,160 --> 04:56:51,760
I SAW THAT HIGHLIGHTED ON THE

7623
04:56:51,760 --> 04:56:52,360
WORKFORCE DIVERSITY, WONDERING

7624
04:56:52,360 --> 04:56:55,280
IF THERE'S SOMETHING WE COULD BE

7625
04:56:55,280 --> 04:56:56,920
DOING OR AMPLIFY SOMETHING WE'RE

7626
04:56:56,920 --> 04:56:57,600
ALREADY DOING.

7627
04:56:57,600 --> 04:56:58,120
THANKS.

7628
04:56:58,120 --> 04:56:58,560
>>THIS IS LYDIA.

7629
04:56:58,560 --> 04:57:00,520
THANK YOU FOR THAT QUESTION,

7630
04:57:00,520 --> 04:57:00,920
SCOTT.

7631
04:57:00,920 --> 04:57:04,480
THAT ISSUE IS ONE I RAISE

7632
04:57:04,480 --> 04:57:06,960
CONSISTENTLY, WE DO NOT HAVE

7633
04:57:06,960 --> 04:57:09,720
THAT MANY OPENLY DISABLED LET

7634
04:57:09,720 --> 04:57:10,800
ALONE SPECIFICALLY OPENLY

7635
04:57:10,800 --> 04:57:11,680
AUTISTIC PEOPLE CONDUCTING

7636
04:57:11,680 --> 04:57:12,680
RESEARCH SPECIFICALLY AS P.I.s

7637
04:57:12,680 --> 04:57:14,640
OR CO-P.I.s OF STUDIES ABOUT

7638
04:57:14,640 --> 04:57:15,960
ISSUES THAT DIRECTLY AFFECT US.

7639
04:57:15,960 --> 04:57:20,240
WE DO NOT HAVE ENOUGH DISABLED

7640
04:57:20,240 --> 04:57:22,440
PEOPLE OPENLY AND OPEN ABOUT

7641
04:57:22,440 --> 04:57:25,240
BEING DISABLED, WHO ARE IN

7642
04:57:25,240 --> 04:57:26,880
POSITIONS MAKING DECISIONS IN

7643
04:57:26,880 --> 04:57:28,640
DIRECT SERVICES, WHETHER THAT IS

7644
04:57:28,640 --> 04:57:30,080
COMMUNITY BASED SERVICES OR NOT.

7645
04:57:30,080 --> 04:57:32,360
WE DON'T HAVE ENOUGH PEOPLE

7646
04:57:32,360 --> 04:57:34,320
OPENLY DISABLED WHO ARE THE ONES

7647
04:57:34,320 --> 04:57:36,720
IN EDUCATIONAL LEADERSHIP OR WHO

7648
04:57:36,720 --> 04:57:37,960
ARE RUNNING WORKFORCE

7649
04:57:37,960 --> 04:57:39,240
DEVELOPMENT PROGRAMS EVEN.

7650
04:57:39,240 --> 04:57:46,880
THERE ARE VANISH WILL GO FEW OF

7651
04:57:46,880 --> 04:57:48,320
US, FEWER THAN 10% IN THE ZOOM

7652
04:57:48,320 --> 04:57:48,760
RIGHT NOW.

7653
04:57:48,760 --> 04:57:49,600
THAT'S A PROBLEM.

7654
04:57:49,600 --> 04:57:50,720
YOUR QUESTION RAISES THE SAME

7655
04:57:50,720 --> 04:57:52,600
KINDS OF SYSTEM ISSUE ISSUES AND

7656
04:57:52,600 --> 04:57:55,120
PIPELINE ISSUES THAT COME UP

7657
04:57:55,120 --> 04:58:05,600
AROUND ALL CONVERSATIONS ON

7658
04:58:07,240 --> 04:58:08,800
TRAINING, SUPPORTING ACADEMIA,

7659
04:58:08,800 --> 04:58:09,440
HIRING, PROMOTION, PROFESSIONAL

7660
04:58:09,440 --> 04:58:13,040
DEVELOPMENT FOR PEOPLE FROM ALL

7661
04:58:13,040 --> 04:58:14,360
MARGINALIZED COMMUNITIES.

7662
04:58:14,360 --> 04:58:17,200
AND I PRACTICE SPECIAL EDUCATION

7663
04:58:17,200 --> 04:58:21,800
LAW FOR A TIME, AND I WAS ONE OF

7664
04:58:21,800 --> 04:58:23,600
FEW OPENLY AUTISTIC ATTORNEYS

7665
04:58:23,600 --> 04:58:24,680
WHO WAS PRACTICING SPECIAL

7666
04:58:24,680 --> 04:58:26,320
EDUCATION LAW WORKING WITH

7667
04:58:26,320 --> 04:58:27,440
STUDENTS WITH DISABILITIES AND

7668
04:58:27,440 --> 04:58:28,640
FAMILIES, THAT MATTERED TO THE

7669
04:58:28,640 --> 04:58:30,240
CLIENTS THAT I WORKED WITH AND

7670
04:58:30,240 --> 04:58:31,360
TO THEIR FAMILIES.

7671
04:58:31,360 --> 04:58:33,960
AND YET THAT'S NOT THE NORM,

7672
04:58:33,960 --> 04:58:34,920
RIGHT?

7673
04:58:34,920 --> 04:58:37,680
AND SO I THINK ABOUT WHAT I'VE

7674
04:58:37,680 --> 04:58:40,200
OFTEN REFERRED TO AS A FLEXY

7675
04:58:40,200 --> 04:58:41,520
GLASS CEILING IN WORKFORCE

7676
04:58:41,520 --> 04:58:44,280
DEVELOPMENT WORLD, AND THIS

7677
04:58:44,280 --> 04:58:47,760
MIRRORS CONVERSATIONS AROUND

7678
04:58:47,760 --> 04:58:51,200
GENERAL SERVICES FOR PEOPLE WITH

7679
04:58:51,200 --> 04:58:54,120
DISABILITY, ALL PEOPLE WITH IDD,

7680
04:58:54,120 --> 04:58:56,520
MANY PEOPLE EXPLICITLY

7681
04:58:56,520 --> 04:58:57,560
CATEGORIZED AS DEVELOPMENTALLY

7682
04:58:57,560 --> 04:59:01,360
DISABLED SHUNTED INTO FOUR Fs

7683
04:59:01,360 --> 04:59:03,080
FOR JOBS, FOOD, FLOWERS, FILTH,

7684
04:59:03,080 --> 04:59:09,080
AND I FORGET THE FOURTH. 

7685
04:59:09,080 --> 04:59:09,680
PLEASE TELL ME.

7686
04:59:09,680 --> 04:59:10,000
>>FILING.

7687
04:59:10,000 --> 04:59:10,520
>>FILING.

7688
04:59:10,520 --> 04:59:11,400
THAT'S IT.

7689
04:59:11,400 --> 04:59:14,480
THANK YOU.

7690
04:59:14,480 --> 04:59:16,520
FOOD, FLOWERS, FILTH, FILING,

7691
04:59:16,520 --> 04:59:18,760
REFERRING TO TYPES OF JOBS

7692
04:59:18,760 --> 04:59:20,920
EXTREMELY LOW PAID AND THAT'S

7693
04:59:20,920 --> 04:59:25,080
EVEN FOR THOSE NOT SUBJECT TO

7694
04:59:25,080 --> 04:59:26,200
14C SUBMINIMUM WAGE CERTIFICATE

7695
04:59:26,200 --> 04:59:28,480
HOLDERS, THEY ARE USUALLY PAID

7696
04:59:28,480 --> 04:59:30,120
MINIMUM OR SUBMINIMUM WAGE, AND

7697
04:59:30,120 --> 04:59:33,960
CONSIDERED TO BE DEAD END JOBS.

7698
04:59:33,960 --> 04:59:36,880
THIS SPECIFIC JOBS PEOPLE WITH

7699
04:59:36,880 --> 04:59:38,760
DEVELOPMENTAL DISABILITIES ARE

7700
04:59:38,760 --> 04:59:40,640
CONSIDERED HIREABLE FOR, EVEN

7701
04:59:40,640 --> 04:59:43,800
FOR PROGRAMS THAT ARE ALLEGEDLY

7702
04:59:43,800 --> 04:59:44,920
PROMOTING SUPPORTED EMPLOYMENT

7703
04:59:44,920 --> 04:59:48,360
COMPETITIVE INTEGRATED

7704
04:59:48,360 --> 04:59:49,800
EMPLOYMENT ARE STILL SHUNTING TO

7705
04:59:49,800 --> 04:59:52,560
THE FOUR Fs OR IN OTHER FIELDS

7706
04:59:52,560 --> 04:59:54,720
OR SECTORS INTO NONETHELESS

7707
04:59:54,720 --> 04:59:55,960
ENTRY LEVEL POSITIONS WITH NO

7708
04:59:55,960 --> 04:59:57,080
EXPECTATION FOR PROMOTION.

7709
04:59:57,080 --> 04:59:58,360
FOR EXAMPLE, I SPOKE TO SOMEBODY

7710
04:59:58,360 --> 05:00:00,840
IN THE LAST FEW YEARS WHO IS AN

7711
05:00:00,840 --> 05:00:05,240
EMPLOYEE WITH DEVELOPMENTAL

7712
05:00:05,240 --> 05:00:06,000
DISABILITIES WORKING FOR THE

7713
05:00:06,000 --> 05:00:07,960
FEDERAL GOVERNMENT PAID AT ONE

7714
05:00:07,960 --> 05:00:11,600
OF THE LOWEST SCALES, GS 7, AT A

7715
05:00:11,600 --> 05:00:13,800
GS 7 PAY RATE, FOR 30 YEARS.

7716
05:00:13,800 --> 05:00:15,640
AND THAT'S A PAY RATE THAT'S

7717
05:00:15,640 --> 05:00:17,400
INTENDED FOR A TEMPORARY

7718
05:00:17,400 --> 05:00:19,560
SEASONAL WORKER, FOR A STUDENT

7719
05:00:19,560 --> 05:00:21,200
TRAINEE AGAIN IN A TEMPORARY

7720
05:00:21,200 --> 05:00:23,600
POSITION, RATHER THAN TO BE A

7721
05:00:23,600 --> 05:00:25,720
CAREER POSITION, AND TO BE PAID

7722
05:00:25,720 --> 05:00:28,560
AT THAT SAME GRADE SCALE LEVEL

7723
05:00:28,560 --> 05:00:29,760
FOR 30 YEARS INDICATES THAT

7724
05:00:29,760 --> 05:00:31,840
ABSOLUTELY NOBODY IN THE AGENCY

7725
05:00:31,840 --> 05:00:36,560
FOR WHOM THIS PERSON WAS HIRED

7726
05:00:36,560 --> 05:00:37,400
LIKELY AS SPECIAL APPOINTMENT

7727
05:00:37,400 --> 05:00:38,840
AUTHORITY BELIEVED THIS PERSON

7728
05:00:38,840 --> 05:00:41,600
WAS CAPABLE OR DESERVING OF ANY

7729
05:00:41,600 --> 05:00:43,440
SUPPORT FOR ANY PROMOTIONAL

7730
05:00:43,440 --> 05:00:44,200
ADVANCEMENT.

7731
05:00:44,200 --> 05:00:47,280
FOR THOSE WHO DO HAVE AGAIN THE

7732
05:00:47,280 --> 05:00:50,760
CONDITIONAL PRIVILEGE OF PER

7733
05:00:50,760 --> 05:00:52,840
SUING ADVANCED DEGREE OR ANY

7734
05:00:52,840 --> 05:00:57,320
COLLEGE DEGREE AND PROFESSIONAL

7735
05:00:57,320 --> 05:00:58,880
CAREER PATH THE PLEXIGLASS

7736
05:00:58,880 --> 05:01:02,560
CEILING REMAINS.

7737
05:01:02,560 --> 05:01:03,280
SARAH LEWDMAN COMMENTED

7738
05:01:03,280 --> 05:01:04,880
AUTOBIOGRAPHY PEOPLE IN POLICY

7739
05:01:04,880 --> 05:01:06,840
ARE OFTEN NOT ABLE TO BE

7740
05:01:06,840 --> 05:01:10,360
ADVANCED OUT OF JUNIOR LEVEL

7741
05:01:10,360 --> 05:01:12,280
POSITIONS, IT'S INCREDIBLY RARE

7742
05:01:12,280 --> 05:01:14,840
FOR AUTISTIC AND PRESUMABLY

7743
05:01:14,840 --> 05:01:15,920
OTHER DEVELOPMENTALLY DISABLED

7744
05:01:15,920 --> 05:01:18,800
PEOPLE TO BE CONSIDERED FOR

7745
05:01:18,800 --> 05:01:20,760
PROMOTIONAL OPPORTUNITY OUT OF

7746
05:01:20,760 --> 05:01:23,520
JUNIOR LEVEL POSITIONS, EXCEPT

7747
05:01:23,520 --> 05:01:24,920
IN SELF-ADVOCACY ORGANIZATIONS

7748
05:01:24,920 --> 05:01:27,760
WHICH ARE LED BY PEOPLE WITH

7749
05:01:27,760 --> 05:01:30,080
DISABILITIES BY DEFINITION.

7750
05:01:30,080 --> 05:01:32,560
THESE DISPARITIES PERSIST AND OF

7751
05:01:32,560 --> 05:01:34,760
COURSE ARE FURTHER EXACERBATED

7752
05:01:34,760 --> 05:01:37,200
FOR DISABLED PEOPLE AUTISTIC AND

7753
05:01:37,200 --> 05:01:43,240
OTHERWISE WHO BELONG TO OTHER

7754
05:01:43,240 --> 05:01:44,440
MARGINALIZED COMMUNITIES.

7755
05:01:44,440 --> 05:01:47,480
SO I THINK ABOUT HOW AND WHY

7756
05:01:47,480 --> 05:01:49,800
AUTISTIC PEOPLE ARE MORE THAN

7757
05:01:49,800 --> 05:01:51,960
EVER MAKING IT TO DOCTORAL

7758
05:01:51,960 --> 05:01:55,960
TRAINING BUT NOT TO POSTDOCTORAL

7759
05:01:55,960 --> 05:01:56,440
FELLOWSHIPS.

7760
05:01:56,440 --> 05:01:58,920
WE'RE MAKING IT TO COLLEGE BUT

7761
05:01:58,920 --> 05:02:01,720
NOT TO PROGRAMS THAT ARE

7762
05:02:01,720 --> 05:02:03,600
SUPPORTING US FOR PROMOTIONAL

7763
05:02:03,600 --> 05:02:04,520
POTENTIAL, MAKING IT INTO JOBS

7764
05:02:04,520 --> 05:02:09,080
FOR THOSE THAT ARE ABLE TO BE

7765
05:02:09,080 --> 05:02:10,360
EMPLOYED, ONE STATISTICS IS ONLY

7766
05:02:10,360 --> 05:02:12,240
30% OF AUTISTIC ADULTS ARE

7767
05:02:12,240 --> 05:02:14,080
ACTUALLY EMPLOYED FULL TIME.

7768
05:02:14,080 --> 05:02:15,920
SO THOSE THAT MAKE IT TO

7769
05:02:15,920 --> 05:02:17,960
EMPLOYMENT WHICH IS STILL MORE

7770
05:02:17,960 --> 05:02:20,880
THAN PERHAPS THE CASE 20 YEARS

7771
05:02:20,880 --> 05:02:23,200
AGO, ARE NOT MAKING IT TO MIDDLE

7772
05:02:23,200 --> 05:02:26,080
MANAGEMENT LET ALONE SENIOR

7773
05:02:26,080 --> 05:02:27,920
MANAGEMENT POSITIONS.

7774
05:02:27,920 --> 05:02:30,200
WE'RE NOT CONSIDERED LEADERSHIP

7775
05:02:30,200 --> 05:02:30,640
MATERIAL.

7776
05:02:30,640 --> 05:02:33,160
THAT IS EVEN FEEDBACK I RECEIVED

7777
05:02:33,160 --> 05:02:35,920
AT ONE POINT WHEN PURSUING A JOB

7778
05:02:35,920 --> 05:02:38,560
OPPORTUNITY FOR A SENIOR LEVEL

7779
05:02:38,560 --> 05:02:38,960
POSITION.

7780
05:02:38,960 --> 05:02:41,160
THOSE IN A POSITION TO MAKE THE

7781
05:02:41,160 --> 05:02:43,920
DECISION DID NOT ENVISION ME AS

7782
05:02:43,920 --> 05:02:45,560
AN ORGANIZATIONAL LEADER, EVEN

7783
05:02:45,560 --> 05:02:47,600
THOUGH I HAVE 15 YEARS OF

7784
05:02:47,600 --> 05:02:48,640
LEADERSHIP EXPERIENCE.

7785
05:02:48,640 --> 05:02:50,880
AND THAT IS NOT A COMMENT THAT

7786
05:02:50,880 --> 05:02:53,200
LIKELY WOULD HAVE BEEN MADE

7787
05:02:53,200 --> 05:02:56,600
ABOUT A PEER WHO IS

7788
05:02:56,600 --> 05:02:58,480
NON-AUTISTIC, WHITE, OR MALE.

7789
05:02:58,480 --> 05:03:00,880
SO ALL THIS TO SAY THERE ARE

7790
05:03:00,880 --> 05:03:02,720
MANY SYSTEMATIC DISPARITIES AT

7791
05:03:02,720 --> 05:03:05,680
EVERY STAGE OF EDUCATION,

7792
05:03:05,680 --> 05:03:07,200
TRAINING, WORKFORCE DEVELOPMENT,

7793
05:03:07,200 --> 05:03:10,040
THAT RESULT IN A LACK OF

7794
05:03:10,040 --> 05:03:11,160
AUTISTIC AND OTHER DISABLED

7795
05:03:11,160 --> 05:03:13,440
PEOPLE MAKING IT THROUGH

7796
05:03:13,440 --> 05:03:14,760
EDUCATIONAL AND TRAINING

7797
05:03:14,760 --> 05:03:16,600
PROGRAMS OR STAYING IN

7798
05:03:16,600 --> 05:03:18,240
PROFESSIONAL FIELDS WHERE THEY

7799
05:03:18,240 --> 05:03:20,320
WOULD HAVE THE OPPORTUNITY TO

7800
05:03:20,320 --> 05:03:21,840
MAKE DECISIONS RUN RESEARCH,

7801
05:03:21,840 --> 05:03:24,160
PROVIDE SERVICES THAT DIRECTLY

7802
05:03:24,160 --> 05:03:25,440
AFFECT AUTISTIC PEOPLE'S QUALITY

7803
05:03:25,440 --> 05:03:26,480
OF LIFE AND ABILITY TO

7804
05:03:26,480 --> 05:03:28,320
PARTICIPATE IN THE COMMUNITY.

7805
05:03:28,320 --> 05:03:31,040
AND I'LL JUST END MY -- I'M

7806
05:03:31,040 --> 05:03:32,680
SORRY, LONG COMMENT, WITH

7807
05:03:32,680 --> 05:03:37,920
ACKNOWLEDGING THAT FOR EXAMPLE

7808
05:03:37,920 --> 05:03:39,360
EVEN FUNDED PROGRAMS ARE NOT

7809
05:03:39,360 --> 05:03:43,640
PROVIDING SERVICES TO  AUTISTIC

7810
05:03:43,640 --> 05:03:47,080
PEOPLE WITH A VIEW WE COULD BE

7811
05:03:47,080 --> 05:03:48,880
LEGITIMATE QUALIFIED CREDIBLE

7812
05:03:48,880 --> 05:03:50,560
CANDIDATES FOR POSITIONS OTHER

7813
05:03:50,560 --> 05:04:01,040
THAN JUNIOR ENTRY LEVEL JOBS.

7814
05:04:36,880 --> 05:04:38,080
>>OFTENTIMES THERE'S NOTE

7815
05:04:38,080 --> 05:04:39,360
SUPPORT, THEY QUIT BECAUSE OF

7816
05:04:39,360 --> 05:04:41,440
THE MENTAL STRAIN AND BURDEN.

7817
05:04:41,440 --> 05:04:44,160
A LOT OF THINGS IN TERMS OF

7818
05:04:44,160 --> 05:04:45,360
WORKFORCE PIPELINE THE ONUS IS

7819
05:04:45,360 --> 05:04:46,320
PUT ON AUTISTIC INDIVIDUAL,

7820
05:04:46,320 --> 05:04:46,920
THAT'S NOT OKAY.

7821
05:04:46,920 --> 05:04:48,400
IT SHOULD BE A COLLECTIVE.

7822
05:04:48,400 --> 05:04:50,320
IT SHOULD BE ABOUT SUPPORTING

7823
05:04:50,320 --> 05:04:54,000
THAT PERSON THROUGH THE PROCESS

7824
05:04:54,000 --> 05:04:54,760
THAT HISTORICALLY THESE THINGS

7825
05:04:54,760 --> 05:04:57,760
WE MAKE THEM GO THROUGH IN TERMS

7826
05:04:57,760 --> 05:04:58,960
OF INTERVIEW, RÉSUMÉ, COVER

7827
05:04:58,960 --> 05:05:00,920
LETTER, THOSE ARE GROUNDED IN A

7828
05:05:00,920 --> 05:05:02,560
LOT OF ABLEIST CULTURE, RIGHT?

7829
05:05:02,560 --> 05:05:03,760
SO TEACHING THEM HOW TO DO THOSE

7830
05:05:03,760 --> 05:05:07,920
THINGS WE CAN DO THAT.

7831
05:05:07,920 --> 05:05:09,840
IT'S PUTTING ON THE ONUS ON THE

7832
05:05:09,840 --> 05:05:12,120
INDIVIDUAL AND IT SHOULD BE

7833
05:05:12,120 --> 05:05:14,160
SHIFTED TO THE WORKPLACES THAT

7834
05:05:14,160 --> 05:05:15,800
SUPPORT THOSE INDIVIDUALS AND

7835
05:05:15,800 --> 05:05:18,720
CREATING CULTURES THAT ARE

7836
05:05:18,720 --> 05:05:19,920
REALLY TRULY INCLUSIVE.

7837
05:05:19,920 --> 05:05:22,360
>>THERE'S THE RESISTANCE
TO

7838
05:05:22,360 --> 05:05:25,640
ACCOMMODATIONS, EVEN WHEN

7839
05:05:25,640 --> 05:05:25,960
REASONABLE.

7840
05:05:25,960 --> 05:05:28,680
SOME EMPLOYERS JUST RESIST

7841
05:05:28,680 --> 05:05:29,480
ACCOMMODATIONS BECAUSE THEY

7842
05:05:29,480 --> 05:05:30,720
DON'T LIKE DOING SOMETHING

7843
05:05:30,720 --> 05:05:31,360
DIFFERENTLY.

7844
05:05:31,360 --> 05:05:34,840
IT'S INTERESTING THAT DURING THE

7845
05:05:34,840 --> 05:05:35,840
PANDEMIC SOMETHING THAT DISABLED

7846
05:05:35,840 --> 05:05:37,840
PEOPLE HAVE BEEN FIGHTING FOR,

7847
05:05:37,840 --> 05:05:40,120
FOR YEARS, ABILITY TO WORK FROM

7848
05:05:40,120 --> 05:05:42,440
HOME AND WORK REMOTELY BECAME

7849
05:05:42,440 --> 05:05:43,040
ACTUALLY STANDARD OPERATING

7850
05:05:43,040 --> 05:05:52,360
PROCEDURE BECAUSE OF THE

7851
05:05:52,360 --> 05:05:52,640
PANDEMIC.

7852
05:05:52,640 --> 05:05:56,320
IT COULD BE DONE AND IS USEFUL,

7853
05:05:56,320 --> 05:06:01,360
THINKING OUTSIDE THE BOX, NOT

7854
05:06:01,360 --> 05:06:03,360
HAVING AN ATTITUDE BARRIER

7855
05:06:03,360 --> 05:06:03,960
MAKING ACCOMMODATION.

7856
05:06:03,960 --> 05:06:05,520
>>KNOWING WHAT YOU NEED
ASK FOR

7857
05:06:05,520 --> 05:06:06,600
TO SUCCEED AT WORK.

7858
05:06:06,600 --> 05:06:07,600
PEOPLE ARE SO GRATEFUL THEY

7859
05:06:07,600 --> 05:06:09,360
DON'T WANT TO ASK FOR OTHER

7860
05:06:09,360 --> 05:06:11,080
THINGS TO CONTINUE TO THRIVE.

7861
05:06:11,080 --> 05:06:14,440
AND CLIMB THAT LADDER TO GET

7862
05:06:14,440 --> 05:06:15,240
PROMOTED OR BE RETAINED.

7863
05:06:15,240 --> 05:06:18,080
>>ANOTHER ISSUE THAT
COMES UP

7864
05:06:18,080 --> 05:06:19,720
IN TARGETED HIRING PROGRAMS FOR

7865
05:06:19,720 --> 05:06:20,880
AUTISTIC AND DISABLED PEOPLE

7866
05:06:20,880 --> 05:06:23,040
THAT I'VE WITNESSED TIME AND

7867
05:06:23,040 --> 05:06:24,480
TIME AGAIN IS THAT WHEN

7868
05:06:24,480 --> 05:06:26,160
COMPANIES OR ORGANIZATIONS ARE

7869
05:06:26,160 --> 05:06:27,920
MAKING THE SO-CALLED BUSINESS

7870
05:06:27,920 --> 05:06:30,000
CASE FOR HIRING WORKERS WITH

7871
05:06:30,000 --> 05:06:31,680
DISABILITIES WHETHER AUTISTIC

7872
05:06:31,680 --> 05:06:33,440
WORKERS OR OTHERWISE, ONE REASON

7873
05:06:33,440 --> 05:06:35,600
THEY STATE THAT WE SHOULD BE

7874
05:06:35,600 --> 05:06:38,560
HIRED IS BECAUSE WE HAVE THE

7875
05:06:38,560 --> 05:06:39,760
LOWEST ABSENTEEISM RATES, MOST

7876
05:06:39,760 --> 05:06:41,400
LIKELY TO SHOW UP ON TIME, TO

7877
05:06:41,400 --> 05:06:44,800
STAY LOYAL TO A COMPANY, AND TO

7878
05:06:44,800 --> 05:06:46,560
COME TO WORK.

7879
05:06:46,560 --> 05:06:48,960
AND I ACTUALLY FIND THAT

7880
05:06:48,960 --> 05:06:51,160
REFLECTIVE OF PATTERNS OF

7881
05:06:51,160 --> 05:06:57,720
EXPLOITATION AND TRAUMA

7882
05:06:57,720 --> 05:06:58,880
ESPECIALLY FOR MULTI-LY

7883
05:06:58,880 --> 05:07:00,560
MARGINALIZED PEOPLE.

7884
05:07:00,560 --> 05:07:01,560
WE'RE AFRAID WE'LL BE

7885
05:07:01,560 --> 05:07:02,440
DISCRIMINATED AGAINST SHOULD WE

7886
05:07:02,440 --> 05:07:05,840
LEAVE THAT JOB BECAUSE WE'RE

7887
05:07:05,840 --> 05:07:06,440
AFRAID OF RETALIATORY

7888
05:07:06,440 --> 05:07:07,480
DISCRIMINATION ON THE JOB IF

7889
05:07:07,480 --> 05:07:09,240
WE'RE NOT SEEN AS THE MOST

7890
05:07:09,240 --> 05:07:10,360
RELIABLE WORKER OUT OF EVERYBODY

7891
05:07:10,360 --> 05:07:12,000
ELSE WHO IS THERE.

7892
05:07:12,000 --> 05:07:15,160
AND WE SHOULDN'T HAVE TO BE

7893
05:07:15,160 --> 05:07:17,640
SUBJECTED TO EXPLOITIVE AND

7894
05:07:17,640 --> 05:07:19,200
THINLY VEILED VARIETY PITY-BASED

7895
05:07:19,200 --> 05:07:20,600
REASONS TO HIRE US IN ORDER TO

7896
05:07:20,600 --> 05:07:22,880
BE ABLE TO PARTICIPATE IN THE

7897
05:07:22,880 --> 05:07:25,000
WORKFORCE AND TO GAIN ECONOMIC

7898
05:07:25,000 --> 05:07:25,280
SECURITY.

7899
05:07:25,280 --> 05:07:27,120
>>TO NOT GET CREDIT FOR
WHAT WE

7900
05:07:27,120 --> 05:07:27,320
DO.

7901
05:07:27,320 --> 05:07:29,000
IN OTHER WORDS, YOU'RE MAKING ME

7902
05:07:29,000 --> 05:07:30,320
THINK OF AN EXPERIENCE WHEN I

7903
05:07:30,320 --> 05:07:33,640
WORKED AT A BOOK STORE, BECAUSE

7904
05:07:33,640 --> 05:07:35,720
I WAS RELIABLE MY SUPERVISOR

7905
05:07:35,720 --> 05:07:37,560
ALWAYS GAVE ME THE EVENING --

7906
05:07:37,560 --> 05:07:38,600
FRIDAY EVENING AND SATURDAY

7907
05:07:38,600 --> 05:07:40,200
SHIFT BECAUSE SHE KNEW I WOULD

7908
05:07:40,200 --> 05:07:41,160
BE THERE.

7909
05:07:41,160 --> 05:07:45,160
BUT ON MY EVALUATION SHE GAVE ME

7910
05:07:45,160 --> 05:07:47,200
ALL AVERAGE.

7911
05:07:47,200 --> 05:07:49,600
EVEN WHEN I SAID, YOU SAY I'M

7912
05:07:49,600 --> 05:07:50,680
GREAT CUSTOMER SERVICE, SHE SAID

7913
05:07:50,680 --> 05:07:53,080
YEAH, BUT YOU'RE SUPPOSED TO BE

7914
05:07:53,080 --> 05:07:55,640
GREAT CUSTOMER SERVICE.

7915
05:07:55,640 --> 05:07:56,880
THAT'S STILL AVERAGE.

7916
05:07:56,880 --> 05:07:59,120
YOU DON'T GET CREDIT FOR THE

7917
05:07:59,120 --> 05:08:01,760
WORK YOU DO BECAUSE LIKE YOU'RE

7918
05:08:01,760 --> 05:08:03,480
SAYING, YOU GET EXPLOITED.

7919
05:08:03,480 --> 05:08:13,440
IT'S LIKE IT'S EXPECTED OF YOU.

7920
05:08:13,440 --> 05:08:16,080
>>I'M GOING TO SKIP TO
HARI

7921
05:08:16,080 --> 05:08:17,880
BECAUSE I SAW HIS HAND UP AND HE

7922
05:08:17,880 --> 05:08:23,200
HASN'T GOTTEN A LOT OF COMMENTS

7923
05:08:23,200 --> 05:08:23,400
TODAY.

7924
05:08:23,400 --> 05:08:23,840
>>GOOD AFTERNOON.

7925
05:08:23,840 --> 05:08:26,520
THIS WAS A VERY MEANINGFUL AND

7926
05:08:26,520 --> 05:08:27,400
INFORMATIVE DISCUSSION, THROUGH

7927
05:08:27,400 --> 05:08:27,720
THE CHAT.

7928
05:08:27,720 --> 05:08:29,000
THANK YOU SO MUCH.

7929
05:08:29,000 --> 05:08:30,440
DATA AND DISCUSSION HELPS

7930
05:08:30,440 --> 05:08:35,680
SUPPORT AND PINPOINT WHAT WE NEW

7931
05:08:35,680 --> 05:08:37,440
RACE/FEMALE DISPARITIES AND

7932
05:08:37,440 --> 05:08:39,720
AUTISM SPACE BUT NEED TO SEE

7933
05:08:39,720 --> 05:08:43,000
REAL TRANSLATABLE ACTION ON THE

7934
05:08:43,000 --> 05:08:43,240
GROUND.

7935
05:08:43,240 --> 05:08:47,480
>>THANK YOU FOR THAT
COMMENT.

7936
05:08:47,480 --> 05:08:49,120
>>I COULD NOT AGREE MORE.

7937
05:08:49,120 --> 05:08:53,720
I THINK WE'RE ALL, I'LL SPEAK

7938
05:08:53,720 --> 05:08:54,480
FOR MYSELF, TIRED OF CONSULTANT

7939
05:08:54,480 --> 05:08:55,640
AT THE THEATER.

7940
05:08:55,640 --> 05:08:57,440
THEY INVITE YOU, WANT YOU TO

7941
05:08:57,440 --> 05:08:58,760
HEAR ABOUT YOU, BASICALLY CHECK

7942
05:08:58,760 --> 05:09:00,800
THE BOX AND ON TO THE NEXT.

7943
05:09:00,800 --> 05:09:03,000
>>THEY NEVER FOLLOW UP.

7944
05:09:03,000 --> 05:09:06,880
>>CORRECT.

7945
05:09:06,880 --> 05:09:12,560
>>I THINK WE'RE READY FOR
SOME

7946
05:09:12,560 --> 05:09:12,800
ACTION.

7947
05:09:12,800 --> 05:09:13,880
>>IVANOVA SMITH.

7948
05:09:13,880 --> 05:09:14,320
YOU'RE NEXT.

7949
05:09:14,320 --> 05:09:16,600
>>THANK YOU SO MUCH, ALL
OF THE

7950
05:09:16,600 --> 05:09:17,360
PANELISTS, FOR THIS WONDERFUL

7951
05:09:17,360 --> 05:09:21,760
DISCUSSION AND FOR ALL THE

7952
05:09:21,760 --> 05:09:24,480
WONDERFUL THINGS YOU SAID.

7953
05:09:24,480 --> 05:09:27,000
HARD TO SAY AND TRUE.

7954
05:09:27,000 --> 05:09:31,920
ONE QUESTION I HAD WAS WHAT WORK

7955
05:09:31,920 --> 05:09:35,840
IS THERE IN PREVENTING

7956
05:09:35,840 --> 05:09:36,520
REINSTITUTIONALIZATION AND

7957
05:09:36,520 --> 05:09:41,000
THERE'S A LOT OF TALK ABOUT

7958
05:09:41,000 --> 05:09:43,000
BRINGING BACK INSTITUTIONS AND I

7959
05:09:43,000 --> 05:09:46,040
WORRY THAT WILL IMPACT THE MOST

7960
05:09:46,040 --> 05:09:48,240
MARGINALIZED COMMUNITIES FIRST.

7961
05:09:48,240 --> 05:09:51,640
AND WHAT THINGS ARE YOU ALL

7962
05:09:51,640 --> 05:10:01,280
WORKING ON TO TRY TO PREVENT

7963
05:10:01,280 --> 05:10:01,480
THAT.

7964
05:10:01,480 --> 05:10:05,480
>>THIS IS LYDIA, THANK
YOU FOR

7965
05:10:05,480 --> 05:10:08,240
RAISING THE ISSUE, PUSHING TO

7966
05:10:08,240 --> 05:10:10,000
BRING BACK INSTITUTIONS AND PUT

7967
05:10:10,000 --> 05:10:11,400
PEOPLE WITH DISABILITIES INTO

7968
05:10:11,400 --> 05:10:12,120
INSTITUTIONS.

7969
05:10:12,120 --> 05:10:13,680
AT THE AUTISTIC PEOPLE OF COLOR

7970
05:10:13,680 --> 05:10:16,520
FUND, ONE OF THE REASONS WHY THE

7971
05:10:16,520 --> 05:10:18,400
MICRO GRANT PROGRAM, THE CORE

7972
05:10:18,400 --> 05:10:20,600
AND FOUNDATION OF OUR WORK, IS

7973
05:10:20,600 --> 05:10:22,560
SO IMPORTANT IS BECAUSE SO MANY

7974
05:10:22,560 --> 05:10:25,560
AUTISTIC PEOPLE OF COLOR ARE

7975
05:10:25,560 --> 05:10:27,480
FACING POTENTIAL EVICTION,

7976
05:10:27,480 --> 05:10:28,040
HOMELESSNESS, HOUSING

7977
05:10:28,040 --> 05:10:29,360
INSTABILITY, AND OTHERWISE WHICH

7978
05:10:29,360 --> 05:10:33,040
ARE ALL RISK FACTORS FOR BEING

7979
05:10:33,040 --> 05:10:34,360
DEEMED INSTITUTIONALIZABLE.

7980
05:10:34,360 --> 05:10:36,880
AND FACING THE RISK OF OTHER

7981
05:10:36,880 --> 05:10:37,880
PEOPLE IN POSITIONS OF POWER,

7982
05:10:37,880 --> 05:10:42,600
ESPECIALLY PEOPLE  WHO ARE NOT

7983
05:10:42,600 --> 05:10:43,560
DISABLED DECIDING PEOPLE IN OUR

7984
05:10:43,560 --> 05:10:45,960
COMMUNITY WOULD BE BETTER SERVED

7985
05:10:45,960 --> 05:10:49,240
UNDER THE CONTROL OF OTHER

7986
05:10:49,240 --> 05:10:52,320
PEOPLE IN AN INSTITUTIONAL

7987
05:10:52,320 --> 05:10:52,520
SETTING.

7988
05:10:52,520 --> 05:10:54,880
UNFORTUNATELY, WE ARE A

7989
05:10:54,880 --> 05:10:56,160
FRONTLINE ORGANIZATION, AND

7990
05:10:56,160 --> 05:10:57,440
WE'RE NOT ENOUGH.

7991
05:10:57,440 --> 05:10:59,560
WE'RE NOT A SYSTEM OF COLLUSION.

7992
05:10:59,560 --> 05:11:01,640
AUTISTIC PEOPLE OF COLOR FUNDS

7993
05:11:01,640 --> 05:11:03,360
MICROGRANT PROGRAM DOES NOT

7994
05:11:03,360 --> 05:11:05,160
SOLVE CENTURIES, LITERAL

7995
05:11:05,160 --> 05:11:08,080
CENTURIES OF ABLEISM AND

7996
05:11:08,080 --> 05:11:09,480
POLICIES THAT SUPPORT THE BELIEF

7997
05:11:09,480 --> 05:11:10,840
DISABLED PEOPLE DO NOT BELONG IN

7998
05:11:10,840 --> 05:11:12,360
PUBLIC LIFE, DO NOT BELONG IN

7999
05:11:12,360 --> 05:11:12,920
THE COMMUNITY.

8000
05:11:12,920 --> 05:11:15,160
AND DO NOT DESERVE TO LIVE IN

8001
05:11:15,160 --> 05:11:16,200
THE COMMUNITY.

8002
05:11:16,200 --> 05:11:19,800
AND WE ARE NOT A SOLUTION TO

8003
05:11:19,800 --> 05:11:20,800
POLICY PROPOSALS TO SEEK TO

8004
05:11:20,800 --> 05:11:21,800
RESTRICT ABILITY TO BE

8005
05:11:21,800 --> 05:11:23,080
INTEGRATED INTO THE COMMUNITY.

8006
05:11:23,080 --> 05:11:26,720
BUT THAT TYPE OF WORK IS SO

8007
05:11:26,720 --> 05:11:28,880
ESSENTIAL AND REMAINS INCREDIBLY

8008
05:11:28,880 --> 05:11:29,520
UNDERFUNDED ESPECIALLY FOR THOSE

8009
05:11:29,520 --> 05:11:31,520
AT THE MOST RISK OF BEING

8010
05:11:31,520 --> 05:11:33,480
TARGETED BY ABUSIVE SERVICE

8011
05:11:33,480 --> 05:11:35,360
PROVIDERS AND FAMILY MEMBERS FOR

8012
05:11:35,360 --> 05:11:38,080
PLACEMENT IN INSTITUTION AND FOR

8013
05:11:38,080 --> 05:11:40,160
LOSING LEGAL ABILITY TO EXERCISE

8014
05:11:40,160 --> 05:11:41,840
AUTONOMY AND CONTROL OVER THEIR

8015
05:11:41,840 --> 05:11:42,320
OWN CHOICES.

8016
05:11:42,320 --> 05:11:45,680
THANK YOU FOR RAISING THAT.

8017
05:11:45,680 --> 05:11:47,360
>>THANK YOU.

8018
05:11:47,360 --> 05:11:50,400
THERE ARE THINGS THAT ARE BEING

8019
05:11:50,400 --> 05:11:52,400
DONE SLOWLY, LIKE FOR INSTANCE

8020
05:11:52,400 --> 05:11:54,760
THERE'S A MOVE LIKE FOR INSTANCE

8021
05:11:54,760 --> 05:11:56,880
IN MASSACHUSETTS TO PASS WHAT'S

8022
05:11:56,880 --> 05:11:59,160
CALLED SUPPORTED DECISION MAKING

8023
05:11:59,160 --> 05:11:59,920
AS ALTERNATIVE TO GUARDIANSHIP

8024
05:11:59,920 --> 05:12:02,760
TO GIVE PEOPLE WITH DISABILITIES

8025
05:12:02,760 --> 05:12:03,960
MORE AUTONOMY.

8026
05:12:03,960 --> 05:12:06,920
ALSO, MOVING AWAY FROM

8027
05:12:06,920 --> 05:12:09,360
TRADITIONAL MODEL OF THE GROUP

8028
05:12:09,360 --> 05:12:10,360
HOME, THERE'S A SELF-DIRECTION.

8029
05:12:10,360 --> 05:12:13,000
SO THAT YOU CAN ACTUALLY CHOOSE

8030
05:12:13,000 --> 05:12:14,600
WHAT AGENCY YOU WANT TO GO WITH

8031
05:12:14,600 --> 05:12:16,880
OR YOU CAN CHOOSE WHAT SERVICES

8032
05:12:16,880 --> 05:12:17,520
YOU WANT.

8033
05:12:17,520 --> 05:12:19,960
AND ON THE FEDERAL LEVEL, THERE

8034
05:12:19,960 --> 05:12:25,960
ARE BILLS FOR INSTANCE LIKE BOB

8035
05:12:25,960 --> 05:12:28,000
CASEY OF PENNSYLVANIA INTRODUCED

8036
05:12:28,000 --> 05:12:29,560
A BILL TO TO PROVIDE MORE

8037
05:12:29,560 --> 05:12:40,120
FUNDING AND SHERYL BROWN OF OHIO

8038
05:12:42,200 --> 05:12:42,720
REINTRODUCED SSI.

8039
05:12:42,720 --> 05:12:43,600
THERE'S A SLIGHT PARADIGM SHIFT

8040
05:12:43,600 --> 05:12:48,400
BUT WE NEED TO PUSH FORWARD AND

8041
05:12:48,400 --> 05:12:52,000
STAY ACTIVE BUT -- YEAH.

8042
05:12:52,000 --> 05:13:01,000
>>I WILL TAKE A QUESTION
FROM

8043
05:13:01,000 --> 05:13:01,280
MORENIKE.

8044
05:13:01,280 --> 05:13:02,080
>>MORENIKE SENT A COMMENT

8045
05:13:02,080 --> 05:13:02,840
THROUGH THE CHAT.

8046
05:13:02,840 --> 05:13:07,000
THEY SAY THERE'S A GREAT DEAL OF

8047
05:13:07,000 --> 05:13:10,920
RACISM, ABLEISM IN THESE

8048
05:13:10,920 --> 05:13:11,560
COMMUNITIES, MISOGYNY IS REAL,

8049
05:13:11,560 --> 05:13:13,680
AUTISTIC INDIVIDUALS NEED TO OWN

8050
05:13:13,680 --> 05:13:15,760
THE FACT THEY HAVE PROJECTED A

8051
05:13:15,760 --> 05:13:19,160
LOT OF EXPERIENCES AND PRIVILEGE

8052
05:13:19,160 --> 05:13:20,400
INTO CONCEPT OF NEURODIVERSITY.

8053
05:13:20,400 --> 05:13:23,840
FAMILIES OF COLOR HAVE BIGGER

8054
05:13:23,840 --> 05:13:24,800
CONCERNS THAN PERSONAL-FIRST

8055
05:13:24,800 --> 05:13:27,280
VERSUS IDENTITY-FIRST LANGUAGE,

8056
05:13:27,280 --> 05:13:29,000
AND PUZZLE PIECES.

8057
05:13:29,000 --> 05:13:35,160
IT ISN'T PEOPLE'S PLACE TO

8058
05:13:35,160 --> 05:13:37,080
CHASTISE NON-AUTISTIC PARENTS OF

8059
05:13:37,080 --> 05:13:38,440
AUTISTIC CHILDREN OF COLOR, YOU

8060
05:13:38,440 --> 05:13:39,840
MIGHT HAVE GOOD INTENTIONS BUT

8061
05:13:39,840 --> 05:13:42,040
YOU'RE ACTUALLY DOING MORE HARM

8062
05:13:42,040 --> 05:13:42,320
THAN GOOD.

8063
05:13:42,320 --> 05:13:44,320
THERE'S A LOT OF LEARNING,

8064
05:13:44,320 --> 05:13:46,120
UNLEARNING, HUMILITY THAT NEEDS

8065
05:13:46,120 --> 05:13:48,960
TO OCCUR AMONG MANY INDIVIDUALS,

8066
05:13:48,960 --> 05:13:52,000
THEY SAY ADDITIONALLY WHY DO WE

8067
05:13:52,000 --> 05:13:53,000
ONLY EXIST THEORETICALLY, WHERE

8068
05:13:53,000 --> 05:13:58,440
ARE THE BLACK AND BROWN AUTISTIC

8069
05:13:58,440 --> 05:14:00,640
PEOPLE, BLACK AND BROWN AUTISTIC

8070
05:14:00,640 --> 05:14:02,080
EXECUTIVE DIRECTORS, WHY ARE

8071
05:14:02,080 --> 05:14:03,160
OTHER ORGANIZATIONS GIVING GRANT

8072
05:14:03,160 --> 05:14:09,920
MOTHER IN SIX OR SEVEN FIGURE

8073
05:14:09,920 --> 05:14:11,120
MULTI-YEAR AMOUNTS AND

8074
05:14:11,120 --> 05:14:15,160
SUBCONTRACT FOR MARGINALIZED

8075
05:14:15,160 --> 05:14:16,280
INDIVIDUALS FOR PENNY, JIM

8076
05:14:16,280 --> 05:14:17,920
CROWE-ED INTO ADVISORY ROLES,

8077
05:14:17,920 --> 05:14:18,800
NEVER GIVEN OPPORTUNITY TO SHOW

8078
05:14:18,800 --> 05:14:24,360
WHAT WE CAN EVEN DO.

8079
05:14:24,360 --> 05:14:26,880
>>I HEAR YOU THERE.

8080
05:14:26,880 --> 05:14:32,800
I'VE BEEN INVOLVED WITH AUTISM

8081
05:14:32,800 --> 05:14:35,160
ORGANIZATIONS THAT WILL ACTUALLY

8082
05:14:35,160 --> 05:14:36,640
TALK ABOUT AUTISM OR ASPERGER'S

8083
05:14:36,640 --> 05:14:39,400
SYNDROME AS A GIFT, EVEN HAVE ON

8084
05:14:39,400 --> 05:14:40,840
THEIR WEBSITE ALL THE HISTORICAL

8085
05:14:40,840 --> 05:14:42,520
FIGURES THAT MAY OR MAY NOT HAVE

8086
05:14:42,520 --> 05:14:43,960
HAD AUTISM.

8087
05:14:43,960 --> 05:14:45,840
BUT THEY THEMSELVES WILL NOT

8088
05:14:45,840 --> 05:14:47,480
HIRE AN AUTISTIC PERSON.

8089
05:14:47,480 --> 05:14:48,720
BUT THEY WILL BE ASKING

8090
05:14:48,720 --> 05:14:50,000
CORPORATE AMERICA TO DO IT BUT

8091
05:14:50,000 --> 05:14:53,360
THEY WON'T DO IT THEMSELVES.

8092
05:14:53,360 --> 05:14:54,360
TOTALLY INSANE.

8093
05:14:54,360 --> 05:14:55,920
THAT'S WHY I'M ACTUALLY

8094
05:14:55,920 --> 05:14:57,880
IMPRESSED WHEN I SEE -- I DO SEE

8095
05:14:57,880 --> 05:14:59,080
SOME ORGANIZATIONS THAT DO PUT

8096
05:14:59,080 --> 05:15:01,040
THEIR MONEY WHERE THEIR MOUTH

8097
05:15:01,040 --> 05:15:02,920
IS, AND AT LEAST HIRE DISABLED

8098
05:15:02,920 --> 05:15:05,640
PEOPLE LIKE THE INSTITUTE FOR

8099
05:15:05,640 --> 05:15:12,280
COMMUNITY INCLUSION AT UMass

8100
05:15:12,280 --> 05:15:13,400
BOSTON.

8101
05:15:13,400 --> 05:15:18,280
I FOUND THAT FRUSTRATING, ALMOST

8102
05:15:18,280 --> 05:15:20,200
MADDENING, THEY WON'T HIRE AN

8103
05:15:20,200 --> 05:15:21,840
AUTISTIC PERSON.

8104
05:15:21,840 --> 05:15:22,960
THEY JUST WON'T.

8105
05:15:22,960 --> 05:15:25,000
>>THIS IS LYDIA.

8106
05:15:25,000 --> 05:15:26,520
IT IS SIMULTANEOUSLY TRUE THE

8107
05:15:26,520 --> 05:15:28,200
ORGANIZATIONS THAT PURPORT TO BE

8108
05:15:28,200 --> 05:15:31,680
WORKING ON ADVOCACY AND BREAKING

8109
05:15:31,680 --> 05:15:34,640
DOWN BARRIERS ARE OFTEN NOT

8110
05:15:34,640 --> 05:15:36,520
MODEL EMPLOYERS, BUT WE ALSO

8111
05:15:36,520 --> 05:15:38,600
SHOULD NOT BE SILOED INTO ONLY

8112
05:15:38,600 --> 05:15:41,240
WORKING IN AUTISM AND

8113
05:15:41,240 --> 05:15:41,800
DISABILITY-RELATED ADVOCACY.

8114
05:15:41,800 --> 05:15:43,840
AND THERE ARE MANY OF US WHO ARE

8115
05:15:43,840 --> 05:15:45,160
PASSIONATE ABOUT WORKING IN THIS

8116
05:15:45,160 --> 05:15:45,560
FIELD.

8117
05:15:45,560 --> 05:15:47,040
I'M CLEARLY ONE OF THEM.

8118
05:15:47,040 --> 05:15:48,880
I'M HERE.

8119
05:15:48,880 --> 05:15:51,920
MANY OF MY COLLEAGUES HERE ARE

8120
05:15:51,920 --> 05:15:52,520
AS WELL.

8121
05:15:52,520 --> 05:15:56,960
BUT OUR ONLY CAREER PATH, THIS

8122
05:15:56,960 --> 05:15:59,160
SHOULD NOT BE THE ONLY AVAILABLE

8123
05:15:59,160 --> 05:16:02,000
CAREER PATH TO ESCAPE THE FOUR

8124
05:16:02,000 --> 05:16:02,160
Fs.

8125
05:16:02,160 --> 05:16:03,000
>>YEAH, EVEN PARTS OF THE

8126
05:16:03,000 --> 05:16:04,480
ECONOMY THAT ARE INTERESTED IN

8127
05:16:04,480 --> 05:16:07,200
HIRING US, LIKE IN THE PRIVATE

8128
05:16:07,200 --> 05:16:10,400
SECTOR, THEY SHOULDN'T ALWAYS BE

8129
05:16:10,400 --> 05:16:11,560
TECH OR FINANCE.

8130
05:16:11,560 --> 05:16:12,640
WHY AREN'T NEWSPAPERS

8131
05:16:12,640 --> 05:16:13,040
INTERESTED?

8132
05:16:13,040 --> 05:16:14,120
OR PUBLISHING COMPANIES?

8133
05:16:14,120 --> 05:16:15,880
OR BASICALLY THE WHOLE ECONOMY?

8134
05:16:15,880 --> 05:16:17,360
EVERYONE SHOULD BE INTERESTED IN

8135
05:16:17,360 --> 05:16:18,800
HIRING US BECAUSE WE HAVE ALL

8136
05:16:18,800 --> 05:16:22,880
DIFFERENT TYPES OF SKILLS AND

8137
05:16:22,880 --> 05:16:23,120
ABILITIES.

8138
05:16:23,120 --> 05:16:28,520
WE'RE NOT ALL THE SAME. 

8139
05:16:28,520 --> 05:16:29,520
>>THANK YOU.

8140
05:16:29,520 --> 05:16:34,880
WE'LL TAKE A QUESTION FROM DENA.

8141
05:16:34,880 --> 05:16:37,080
>>I WANT TO THANK JILL
FOR HER

8142
05:16:37,080 --> 05:16:38,360
STATEMENT WHEN SHE SAYS THAT

8143
05:16:38,360 --> 05:16:40,600
PEOPLE DON'T EVEN KNOW WHAT TO

8144
05:16:40,600 --> 05:16:42,080
ASK FOR.

8145
05:16:42,080 --> 05:16:44,080
AND THIS GOES BACK TO, YOU KNOW,

8146
05:16:44,080 --> 05:16:45,720
WHAT DR. HERNANDEZ AND I HAVE

8147
05:16:45,720 --> 05:16:49,240
BEEN TALKING ABOUT IN REGARD TO

8148
05:16:49,240 --> 05:16:50,080
INTENSIVE INTERVENTION SUPPORT

8149
05:16:50,080 --> 05:16:54,880
AT THE TIME OF DIAGNOSIS, RIGHT?

8150
05:16:54,880 --> 05:16:57,840
WE AS AUTISTIC ADULTS ARE SO

8151
05:16:57,840 --> 05:17:00,080
BUSY TRYING TO CONFORM THAT NO

8152
05:17:00,080 --> 05:17:02,120
ONE HAS EVER SAT US DOWN AND

8153
05:17:02,120 --> 05:17:05,200
HELPED US EXPLORE HOW WE

8154
05:17:05,200 --> 05:17:06,760
EXPERIENCE AUTISM AND IN TURN

8155
05:17:06,760 --> 05:17:09,960
WHAT ACCOMMODATIONS COULD BE

8156
05:17:09,960 --> 05:17:10,360
HELPFUL.

8157
05:17:10,360 --> 05:17:12,160
AND ALL OF THAT RESPONSIBILITY

8158
05:17:12,160 --> 05:17:13,440
FALLS ON THE AUTISTIC INDIVIDUAL

8159
05:17:13,440 --> 05:17:14,720
FOR CHANGE.

8160
05:17:14,720 --> 05:17:18,200
AND WHAT WE REALLY NEED TO DO IS

8161
05:17:18,200 --> 05:17:19,760
TRANSFORM OUR WORKPLACE

8162
05:17:19,760 --> 05:17:22,920
ENVIRONMENTS AND SPEND MORE TIME

8163
05:17:22,920 --> 05:17:25,680
MAKING THESE ENVIRONMENTS MORE

8164
05:17:25,680 --> 05:17:27,760
NEURODIVERSITY PRESENTLY, MORE

8165
05:17:27,760 --> 05:17:28,640
NEURODIVERSITY SAVVY, AND

8166
05:17:28,640 --> 05:17:30,360
SUPPORTIVE FROM EVERYTHING FROM

8167
05:17:30,360 --> 05:17:32,360
THE ENVIRONMENT TO THE HIRING

8168
05:17:32,360 --> 05:17:32,800
PROCEDURES.

8169
05:17:32,800 --> 05:17:42,600
AND I DID WANT TO SAY TOO THAT A

8170
05:17:42,600 --> 05:17:44,240
BROAD UP HIRING, IT'S STILL

8171
05:17:44,240 --> 05:17:47,760
FRAUGHT WITH BURDEN, A LOT OF

8172
05:17:47,760 --> 05:17:50,280
BUZZWORDS AND PRESUMED COGNITIVE

8173
05:17:50,280 --> 05:17:52,600
CAPACITIES, SO WE NEED TO BREAK

8174
05:17:52,600 --> 05:17:55,240
DOWN BARRIERS AND LASTLY TO

8175
05:17:55,240 --> 05:17:56,840
CAMILLE, YOU'RE TOTALLY RIGHT.

8176
05:17:56,840 --> 05:17:58,240
WE'RE NOT ALWAYS CULTURALLY

8177
05:17:58,240 --> 05:18:00,120
SAVVY ABOUT WHY THINGS AREN'T

8178
05:18:00,120 --> 05:18:00,680
WORKING.

8179
05:18:00,680 --> 05:18:02,320
OF IN YOUR COMMUNITY.

8180
05:18:02,320 --> 05:18:04,840
AND I WANT TO KNOW WHAT WE CAN

8181
05:18:04,840 --> 05:18:06,520
DO AS A RESEARCH COMMUNITY TO

8182
05:18:06,520 --> 05:18:09,000
MAKE SURE WE'RE RESEARCHING THE

8183
05:18:09,000 --> 05:18:10,440
PHENOMENON THAT YOU'RE

8184
05:18:10,440 --> 05:18:13,040
DESCRIBING, CAMILLE, OR OTHER

8185
05:18:13,040 --> 05:18:13,600
PHENOMENONS THAT COME FROM

8186
05:18:13,600 --> 05:18:16,920
WITHIN THE COMMUNITY WE NEED TO

8187
05:18:16,920 --> 05:18:21,480
HELP CLOSE THAT GAP, IT STARTS

8188
05:18:21,480 --> 05:18:22,280
WITH LEADERSHIP LIKE YOURS.

8189
05:18:22,280 --> 05:18:24,200
>>THANKS FOR SHARING
THOSE

8190
05:18:24,200 --> 05:18:24,600
COMMENTS.

8191
05:18:24,600 --> 05:18:33,000
ONE MORE THING I DID NOT SAY, WE

8192
05:18:33,000 --> 05:18:36,720
ALLUDED TO EARLIER, THIS ISSUE

8193
05:18:36,720 --> 05:18:38,480
OF MASKING, AN ANECDOTE FROM AN

8194
05:18:38,480 --> 05:18:41,000
EXPERIENCE A FEW WEEKS AGO WITH

8195
05:18:41,000 --> 05:18:43,680
A YOUNG BLACK AUTISTIC WOMAN,

8196
05:18:43,680 --> 05:18:44,920
REFLECTING ON HIGH SCHOOL

8197
05:18:44,920 --> 05:18:47,240
EXPERIENCES, NOW A YOUNG ADULT

8198
05:18:47,240 --> 05:18:48,120
LOOKING FOR EMPLOYMENT, BUT

8199
05:18:48,120 --> 05:18:49,640
SOMETIMES WHEN THEY ASK ABOUT

8200
05:18:49,640 --> 05:18:52,360
WHAT DO YOU NEED TO BE

8201
05:18:52,360 --> 05:18:53,680
SUCCESSFUL IN THE MOMENT YOU

8202
05:18:53,680 --> 05:18:54,800
CAN'T -- THE AUTISTIC PERSON

8203
05:18:54,800 --> 05:18:55,360
CAN'T ANSWER THAT.

8204
05:18:55,360 --> 05:18:59,240
THEY NEED TIME TO PROS  PROCESSD

8205
05:18:59,240 --> 05:19:00,240
THINK.

8206
05:19:00,240 --> 05:19:02,960
THEY ASKED HER THAT IN HIGH

8207
05:19:02,960 --> 05:19:03,200
SCHOOL.

8208
05:19:03,200 --> 05:19:05,640
SHE HAD HER 504 PLAN MEETING,

8209
05:19:05,640 --> 05:19:08,080
PAIRS OF EYES WAITING FOR HER TO

8210
05:19:08,080 --> 05:19:08,280
SPEAK.

8211
05:19:08,280 --> 05:19:09,720
AND SHE JUST COULDN'T ARTICULATE

8212
05:19:09,720 --> 05:19:11,480
IN THE MOMENT THOSE NECESSARY

8213
05:19:11,480 --> 05:19:14,240
ACCOMMODATIONS AND SUPPORT SHE

8214
05:19:14,240 --> 05:19:14,560
NEEDED.

8215
05:19:14,560 --> 05:19:17,400
AND SHE FELL SILENT FOR THREE

8216
05:19:17,400 --> 05:19:19,200
YEARS BECAUSE ONE OUT OF SIX

8217
05:19:19,200 --> 05:19:20,560
TEACHERS EVEN LOOKED AT HER 504

8218
05:19:20,560 --> 05:19:21,960
PLAN TO DO SOMETHING AND HELP

8219
05:19:21,960 --> 05:19:22,800
HER WITH HER SUPPORT.

8220
05:19:22,800 --> 05:19:25,480
BUT THE OTHER FIVE TEACHERS

8221
05:19:25,480 --> 05:19:25,720
DIDN'T.

8222
05:19:25,720 --> 05:19:27,920
AND SHE FELT SO MUCH PRESSURE TO

8223
05:19:27,920 --> 05:19:29,440
NAME THE THING SHE NEEDED

8224
05:19:29,440 --> 05:19:30,760
BECAUSE SHE COULDN'T FIGURE OUT

8225
05:19:30,760 --> 05:19:32,320
IN THAT MOMENT WHAT SHE NEEDED

8226
05:19:32,320 --> 05:19:33,600
SO I THINK THAT'S SOMETHING THAT

8227
05:19:33,600 --> 05:19:35,440
HAPPENS A LOT IN TERMS OF LIKE,

8228
05:19:35,440 --> 05:19:37,040
WELL, WE THOUGHT TO ASK, YOU

8229
05:19:37,040 --> 05:19:38,440
DIDN'T SAY ANYTHING, WE'RE NOT

8230
05:19:38,440 --> 05:19:39,720
GOING TO PROVIDE THOSE SUPPORTS.

8231
05:19:39,720 --> 05:19:41,040
THAT HAPPENS NOT JUST IN SCHOOLS

8232
05:19:41,040 --> 05:19:43,160
BUT ALSO IN THE WORKPLACE AS

8233
05:19:43,160 --> 05:19:43,360
WELL.

8234
05:19:43,360 --> 05:19:53,920
THANKS, DENA, FOR THAT COMMENT.

8235
05:19:56,480 --> 05:19:59,400
>>A COMMENT FROM
MORENIKE,

8236
05:19:59,400 --> 05:20:00,760
MAKING CORRECTIONS IN WHAT WAS

8237
05:20:00,760 --> 05:20:02,800
IN HER COMMENT IN THEIR COMMENT

8238
05:20:02,800 --> 05:20:06,960
THAT CAME IN THROUGH STEPHEN.

8239
05:20:06,960 --> 05:20:10,160
SO, IT WAS MEANT TO BE BLACK AND

8240
05:20:10,160 --> 05:20:17,800
BROWN PRINCIPAL INVESTIGATORS,

8241
05:20:17,800 --> 05:20:23,320
NOT PEOPLE.

8242
05:20:23,320 --> 05:20:25,160
AND MYSOGYNOIR, SO A COMBINATION

8243
05:20:25,160 --> 05:20:30,000
OF MISOGYNY AND PEOPLE OF COLOR.

8244
05:20:30,000 --> 05:20:40,560
AND ALSO IT IS NOT NON-PEOPLE OF

8245
05:20:42,640 --> 05:20:43,360
COLOR, HASHTAG

8246
05:20:43,360 --> 05:20:44,000
#ACTUALLYAUTISTICPEOPLE'S PLACE

8247
05:20:44,000 --> 05:20:44,440
TO CHASTISE.

8248
05:20:44,440 --> 05:20:45,960
I WOULD LIKE TO HAVE THE

8249
05:20:45,960 --> 05:20:48,280
PRIVILEGE OF JUST ASKING YOU A

8250
05:20:48,280 --> 05:20:50,120
FINAL COMMENT, WHAT WOULD YOU

8251
05:20:50,120 --> 05:20:58,000
LIKE TO TELL MEMBERS OF OUR

8252
05:20:58,000 --> 05:21:00,760
COMMITTEE THAT YOU WOULD LIKE TO

8253
05:21:00,760 --> 05:21:02,040
SEE HAPPEN AND THINGS THEY MIGHT

8254
05:21:02,040 --> 05:21:04,680
BE ABLE TO ACTUALLY TAKE ACTION

8255
05:21:04,680 --> 05:21:05,160
ON?

8256
05:21:05,160 --> 05:21:07,200
EITHER INDIVIDUALLY IN THEIR OWN

8257
05:21:07,200 --> 05:21:08,400
AGENCIES OR AT THEIR

8258
05:21:08,400 --> 05:21:11,360
ORGANIZATION OR COLLECTIVELY AS

8259
05:21:11,360 --> 05:21:12,880
A COMMITTEE.

8260
05:21:12,880 --> 05:21:14,560
>>THIS IS LYDIA.

8261
05:21:14,560 --> 05:21:16,400
I KNOW I'VE TAKEN UP A FAIR

8262
05:21:16,400 --> 05:21:17,960
AMOUNT OF AIR TIME TODAY SO I'M

8263
05:21:17,960 --> 05:21:19,480
GOING TO KEEP THIS VERY BRIEF

8264
05:21:19,480 --> 05:21:22,000
BUT THE CAVEAT BEING AS AN

8265
05:21:22,000 --> 05:21:23,080
AUTISTIC PERSON WITH ADD,

8266
05:21:23,080 --> 05:21:26,160
BREVITY IS NOT MY STRONG POINT.

8267
05:21:26,160 --> 05:21:28,560
I APOLOGIZE FOR THAT.

8268
05:21:28,560 --> 05:21:33,720
I DO BELIEVE THAT WE NEED MUCH

8269
05:21:33,720 --> 05:21:36,760
MORE SUSTAINED FUNDING TO

8270
05:21:36,760 --> 05:21:37,840
SUPPORT THE LEADERSHIP AND

8271
05:21:37,840 --> 05:21:39,000
LEADERSHIP DEVELOPMENT OF

8272
05:21:39,000 --> 05:21:46,920
AUTISTIC PEOPLE WHO COME FROM

8273
05:21:46,920 --> 05:21:47,520
SPECIFIC MARGINALIZED

8274
05:21:47,520 --> 05:21:48,360
COMMUNITIES THAT CONTINUE TO BE

8275
05:21:48,360 --> 05:21:50,440
SIDELINED AND TO BE REMOVED EVEN

8276
05:21:50,440 --> 05:21:52,280
FROM CONVERSATIONS LIKE THE ONE

8277
05:21:52,280 --> 05:21:54,120
WE'VE HAD TODAY.

8278
05:21:54,120 --> 05:21:55,320
AND SPECIFICALLY, I'M THINKING

8279
05:21:55,320 --> 05:21:56,880
ABOUT THE MANY PEOPLE CONNECTED

8280
05:21:56,880 --> 05:22:00,960
TO THE AUTISTIC PEOPLE OF COLOR

8281
05:22:00,960 --> 05:22:02,800
FUND, WHO HAVE BEEN INCARCERATED

8282
05:22:02,800 --> 05:22:04,360
IN JAILS OR PRISONS, MANY

8283
05:22:04,360 --> 05:22:05,680
AUTISTIC PEOPLE STRUGGLING WITH

8284
05:22:05,680 --> 05:22:08,080
ADDICTION TO ALCOHOL AND OTHER

8285
05:22:08,080 --> 05:22:10,800
SUBSTANCES, THE MANY AUTISTIC

8286
05:22:10,800 --> 05:22:12,440
PEOPLE OF COLOR WHO HAVE

8287
05:22:12,440 --> 05:22:15,760
EXPERIENCED OR ARE CURRENTLY

8288
05:22:15,760 --> 05:22:19,360
HOMELESS, EITHER FOR SHORT TERM,

8289
05:22:19,360 --> 05:22:23,640
BECAUSE OF SHORT-TERM

8290
05:22:23,640 --> 05:22:24,600
HOMELESSNESS OR CHRONICALLY

8291
05:22:24,600 --> 05:22:26,240
HOMELESS, WHO ARE DEEPLY

8292
05:22:26,240 --> 05:22:28,640
COMMITTED TO ADVOCACY WORK BUT

8293
05:22:28,640 --> 05:22:29,360
NOT AFFILIATED WITH AN

8294
05:22:29,360 --> 05:22:33,560
ORGANIZATION AND DO NOT HAVE THE

8295
05:22:33,560 --> 05:22:34,120
RESOURCES OR INSTITUTIONAL

8296
05:22:34,120 --> 05:22:36,160
SUPPORT TO FORM A PROJECT THAT

8297
05:22:36,160 --> 05:22:38,280
MAY BE COVERED IN THE NEWS OR

8298
05:22:38,280 --> 05:22:39,480
INVITED TO PARTICIPATE IN A

8299
05:22:39,480 --> 05:22:40,920
MEETING LIKE THIS ONE.

8300
05:22:40,920 --> 05:22:43,840
THE AUTISTIC PEOPLE OF COLOR WHO

8301
05:22:43,840 --> 05:22:46,360
DO NOT SPEAK ENGLISH AT ALL,

8302
05:22:46,360 --> 05:22:48,560
EITHER IN WRITING OR OUT LOUD,

8303
05:22:48,560 --> 05:22:51,160
AUTISTIC PEOPLE OF COLOR IN DEAF

8304
05:22:51,160 --> 05:22:53,360
AND DEAFBLIND COMMUNITIES, WHO

8305
05:22:53,360 --> 05:22:56,760
COMMUNICATE THROUGH HOME SIGN,

8306
05:22:56,760 --> 05:22:58,960
HIGHLY LOCALIZED SIGN DIALECTS,

8307
05:22:58,960 --> 05:22:59,840
FROM IMMIGRANT AND REFUGEE

8308
05:22:59,840 --> 05:23:02,800
COMMUNITIES THAT DO NOT SPEAK

8309
05:23:02,800 --> 05:23:03,920
LANGUAGES THAT ARE COMMONLY

8310
05:23:03,920 --> 05:23:06,600
RECOGNIZED WITHIN THE UNITED

8311
05:23:06,600 --> 05:23:07,160
STATES.

8312
05:23:07,160 --> 05:23:14,360
THE AUTISTIC PEOPLE IN NATIVE

8313
05:23:14,360 --> 05:23:17,200
AND INDIGENOUS COMMUNITIES, ON

8314
05:23:17,200 --> 05:23:18,840
TRIBAL LAND, THE FEDERAL

8315
05:23:18,840 --> 05:23:21,800
GOVERNMENT CONTINUE TO FAIL ALL

8316
05:23:21,800 --> 05:23:23,680
OBLIGATIONS OVER THE LAST COUPLE

8317
05:23:23,680 --> 05:23:24,040
CENTURIES.

8318
05:23:24,040 --> 05:23:26,320
THE AUTISTIC PEOPLE OF COLOR WHO

8319
05:23:26,320 --> 05:23:28,040
IN IN OTHER WORDS CONTINUE TO BE

8320
05:23:28,040 --> 05:23:30,960
SHUT OUT OF AND NOT ELEVATED

8321
05:23:30,960 --> 05:23:33,760
EVEN IN CONVERSATIONS THAT ARE

8322
05:23:33,760 --> 05:23:35,160
OSTENSIBLY ABOUT BRINGING IN

8323
05:23:35,160 --> 05:23:36,480
PEOPLE FROM THE MARGINS.

8324
05:23:36,480 --> 05:23:39,760
I SAY THIS KEENLY AWARE AGAIN OF

8325
05:23:39,760 --> 05:23:41,920
ALL OF OUR OWN CONDITIONAL

8326
05:23:41,920 --> 05:23:44,040
PRIVILEGE OF BEING AGE TO

8327
05:23:44,040 --> 05:23:45,480
PARTICIPATE IN THIS CONVERSATION

8328
05:23:45,480 --> 05:23:45,920
TODAY.

8329
05:23:45,920 --> 05:23:48,320
OF BEING ABLE TO COMMUNICATE IN

8330
05:23:48,320 --> 05:23:50,760
WRITING, VERBALLY WITH EACH OF

8331
05:23:50,760 --> 05:23:51,960
YOU TODAY.

8332
05:23:51,960 --> 05:23:54,000
AND WE DO NOT SPEAK FOR EVERY

8333
05:23:54,000 --> 05:23:56,440
SINGLE PERSON IN ALL OF OUR

8334
05:23:56,440 --> 05:23:59,040
COMMUNITIES BUT IT IS OUR

8335
05:23:59,040 --> 05:24:00,720
RESPONSIBILITY AND A SERIOUS

8336
05:24:00,720 --> 05:24:02,640
RESPONSIBILITY AT THAT TO CALL

8337
05:24:02,640 --> 05:24:05,480
FORWARD TO BEAR WITNESS AND LIFT

8338
05:24:05,480 --> 05:24:06,920
UP THE WORK BELIES EXPERIENCES

8339
05:24:06,920 --> 05:24:08,800
AND WISDOM OF ALL OF THE

8340
05:24:08,800 --> 05:24:12,760
AUTISTIC PEOPLE WHO ARE NOT AGE

8341
05:24:12,760 --> 05:24:14,280
TO BE PRESENT TODAY, NOT PART

8342
05:24:14,280 --> 05:24:15,160
THIS CONVERSATION CURRENTLY BUT

8343
05:24:15,160 --> 05:24:17,920
WHO SHOULD BE IN THE FUTURE.

8344
05:24:17,920 --> 05:24:20,960
AND SO THIS GOES FOR

8345
05:24:20,960 --> 05:24:21,640
PROGRAMMATIC GOALS AND OUTCOMES

8346
05:24:21,640 --> 05:24:25,880
ACROSS ALL OF THE AGENCIES THAT

8347
05:24:25,880 --> 05:24:26,240
ARE REPRESENTED.

8348
05:24:26,240 --> 05:24:27,720
OUR WORKFORCE DEVELOPMENT

8349
05:24:27,720 --> 05:24:29,360
PROGRAMS, WE'RE THE WORKFORCE

8350
05:24:29,360 --> 05:24:30,560
DEVELOPMENT PROGRAMS SUPPORTING

8351
05:24:30,560 --> 05:24:31,400
AUTISTIC PEOPLE WHO ARE

8352
05:24:31,400 --> 05:24:33,080
RETURNING FROM THE COMMUNITY

8353
05:24:33,080 --> 05:24:35,040
FROM JAIL OR PRISON.

8354
05:24:35,040 --> 05:24:37,600
WHEN WE'RE THINKING ABOUT

8355
05:24:37,600 --> 05:24:40,040
EDUCATION, IN PRIMARY,

8356
05:24:40,040 --> 05:24:40,560
SECONDARY, POST-SECONDARY

8357
05:24:40,560 --> 05:24:42,120
EDUCATION, HOW ARE WE SUPPORTING

8358
05:24:42,120 --> 05:24:43,560
AUTISTIC PEOPLE THAT ARE

8359
05:24:43,560 --> 05:24:46,440
RETURNING TO COMPLETE AND

8360
05:24:46,440 --> 05:24:47,600
APPRENTICESHIP, TECHNICAL

8361
05:24:47,600 --> 05:24:50,120
DEGREE, OR RESEARCH-BASED DEGREE

8362
05:24:50,120 --> 05:24:52,880
WHO ARE NOT SUPPORTED, WHO

8363
05:24:52,880 --> 05:24:53,480
RECEIVED A CERTIFICATE INSTEAD

8364
05:24:53,480 --> 05:24:57,160
OF A HIGH SCHOOL DIPLOMA, WHO

8365
05:24:57,160 --> 05:24:59,320
RECEIVED A GED, WHO WERE FORCED

8366
05:24:59,320 --> 05:25:01,520
OUT OF NUMEROUS COMMUNITY

8367
05:25:01,520 --> 05:25:03,600
COLLEGE OR 4-YEAR UNIVERSITY

8368
05:25:03,600 --> 05:25:05,120
PROGRAMS BEFORE BEING ABLE TO

8369
05:25:05,120 --> 05:25:06,880
PURSUE A DEGREE, THINKING ABOUT

8370
05:25:06,880 --> 05:25:13,320
LET CARE  -- HEALTH CARE AND DEY

8371
05:25:13,320 --> 05:25:15,000
OF SERVICES, PROPORTIONS LARGE

8372
05:25:15,000 --> 05:25:16,840
PROPORTION IN THE TRANSGENDER

8373
05:25:16,840 --> 05:25:17,920
COMMUNITY, WHO WERE CONTINUALLY

8374
05:25:17,920 --> 05:25:20,800
DEPRIVED OF ACCESS TO CULTURALLY

8375
05:25:20,800 --> 05:25:22,880
RESPONSIVE AND GENDER SUPPORTIVE

8376
05:25:22,880 --> 05:25:24,840
AND AFFIRMING CARE, WHEN WE'RE

8377
05:25:24,840 --> 05:25:26,520
THINKING ABOUT WAYS TO ENSURE

8378
05:25:26,520 --> 05:25:29,880
THAT AUTISTIC PEOPLE ARE ABLE TO

8379
05:25:29,880 --> 05:25:40,440
ATTAIN ECONOMIC SECURITY ARE  WE

8380
05:25:42,560 --> 05:25:43,640
CONSIDERING FAMILY CAREGIVERS,

8381
05:25:43,640 --> 05:25:45,000
NOT MAKING ENOUGH INCOME TO BE

8382
05:25:45,000 --> 05:25:47,920
ABLE TO PAY FOR THEIR OWN

8383
05:25:47,920 --> 05:25:49,000
SERVICES, BUT MAKING TOO MUCH

8384
05:25:49,000 --> 05:25:51,160
INCOME OR HAVING CAPACITY TO

8385
05:25:51,160 --> 05:25:54,120
EARN TOO MUCH INCOME TO QUALIFY

8386
05:25:54,120 --> 05:25:55,240
FOR FEDERALLY FUNDED OR

8387
05:25:55,240 --> 05:25:55,760
SUBSIDIZED SERVICES.

8388
05:25:55,760 --> 05:25:58,240
THIS IS JUST THE TIP OF THE

8389
05:25:58,240 --> 05:25:58,720
ICEBERG.

8390
05:25:58,720 --> 05:26:00,680
I COULD LITERALLY KEEP TALKING

8391
05:26:00,680 --> 05:26:01,520
ABOUT THIS FOR HOURS.

8392
05:26:01,520 --> 05:26:03,280
I WILL NOT DO THAT.

8393
05:26:03,280 --> 05:26:06,280
THANK YOU FOR THAT QUESTION.

8394
05:26:06,280 --> 05:26:07,400
>>I'D LIKE TO JUST HEAR
FROM

8395
05:26:07,400 --> 05:26:09,520
EACH PERSON ON THE PANEL.

8396
05:26:09,520 --> 05:26:12,200
>>I GUESS IF I HAD
ANYTHING

8397
05:26:12,200 --> 05:26:17,600
SPECIFIC, ONE IS THAT I WOULD

8398
05:26:17,600 --> 05:26:20,760
SAY THAT YOU CAN BE THE LEADER,

8399
05:26:20,760 --> 05:26:24,160
EITHER AS AN INDIVIDUAL

8400
05:26:24,160 --> 05:26:25,800
ORGANIZATIONS OR COMMITTEE

8401
05:26:25,800 --> 05:26:27,160
BECAUSE YOU'RE SO CLOSE TO THIS

8402
05:26:27,160 --> 05:26:28,720
WORK, YOU HAVE THE EXPERTISE.

8403
05:26:28,720 --> 05:26:30,000
YOU COULD SHOW THE REST OF THE

8404
05:26:30,000 --> 05:26:32,560
WORLD THE REST OF THE COUNTRY,

8405
05:26:32,560 --> 05:26:34,440
THE REST OF SOCIETY, HOW IT

8406
05:26:34,440 --> 05:26:36,760
SHOULD BE DONE.

8407
05:26:36,760 --> 05:26:37,400
BEST PRACTICES.

8408
05:26:37,400 --> 05:26:38,480
SO IF YOU REALIZE THERE'S

8409
05:26:38,480 --> 05:26:40,800
SOMETHING THAT NEEDS TO BE DONE,

8410
05:26:40,800 --> 05:26:42,640
DO HIRE SOME PEOPLE ON THE

8411
05:26:42,640 --> 05:26:44,600
AUTISM SPECTRUM, PEOPLE OF

8412
05:26:44,600 --> 05:26:46,240
COLOR, DO INSTITUTE THE PROGRAMS

8413
05:26:46,240 --> 05:26:56,360
THAT 

8414
05:26:59,080 --> 05:27:00,720
LYDIA WAS SUGGESTING.

8415
05:27:00,720 --> 05:27:03,560
I SAW THIS THIS MORNING WITH THE

8416
05:27:03,560 --> 05:27:07,640
COMMENT TO THE GRADUATION

8417
05:27:07,640 --> 05:27:10,560
BOARD, BE MORE ACTIVELY ENGAGED,

8418
05:27:10,560 --> 05:27:13,000
LIKE THE BILLS ON CAPITOL HILL,

8419
05:27:13,000 --> 05:27:18,600
ADVOCATE FOR THOSE BILLS, JOIN

8420
05:27:18,600 --> 05:27:21,320
WITH OTHER ORGANIZATIONS LIKE

8421
05:27:21,320 --> 05:27:23,960
THE AUTISM SOCIETY OR AUCD,

8422
05:27:23,960 --> 05:27:25,480
ASSOCIATION OF UNIVERSITY

8423
05:27:25,480 --> 05:27:28,880
CENTERS ON DISABILITY TO

8424
05:27:28,880 --> 05:27:30,720
ACTUALLY PUT YOUR WEIGHT BEHIND

8425
05:27:30,720 --> 05:27:31,960
LEGISLATION AND PUBLIC POLICY

8426
05:27:31,960 --> 05:27:35,320
THAT COULD MOVE US FORWARD.

8427
05:27:35,320 --> 05:27:36,400
THAT WILL BE IT.

8428
05:27:36,400 --> 05:27:37,440
>>I'LL GO NEXT.

8429
05:27:37,440 --> 05:27:40,080
I WOULD SAY NOT BE AFRAID OF

8430
05:27:40,080 --> 05:27:43,960
CHANGE, NOT BE AFRAID TO

8431
05:27:43,960 --> 05:27:45,080
CHALLENGES YOURSELVES, SYSTEMS,

8432
05:27:45,080 --> 05:27:47,400
STATUS QUO, THE WAY WE'VE DONE

8433
05:27:47,400 --> 05:27:49,360
THINGS, BE MORE ACCESSIBLE.

8434
05:27:49,360 --> 05:27:51,320
IT SHOULDN'T TAKE SPECIAL

8435
05:27:51,320 --> 05:27:51,880
INVITES, SPECIAL MEETINGS,

8436
05:27:51,880 --> 05:27:53,200
SPECIAL PATHWAYS TO BE

8437
05:27:53,200 --> 05:27:56,120
ACCESSIBLE TO PEOPLE TO HEAR

8438
05:27:56,120 --> 05:27:58,520
STORIES, HEAR SITUATIONS, I

8439
05:27:58,520 --> 05:28:00,720
THINK ALSO TO GET OUT OF THE

8440
05:28:00,720 --> 05:28:02,360
MENTALITY AND TERRITORIAL AND

8441
05:28:02,360 --> 05:28:03,280
MENTALITY THAT'S ALWAYS LOOMED

8442
05:28:03,280 --> 05:28:06,720
AROUND A LOT OF THESE SYSTEMS.

8443
05:28:06,720 --> 05:28:08,720
WE'RE HEADED IN THE RIGHT

8444
05:28:08,720 --> 05:28:10,160
DIRECTION MAKING ACTIVE STRIDES

8445
05:28:10,160 --> 05:28:12,560
TO REALLY HAVE PEOPLE WITH THIS

8446
05:28:12,560 --> 05:28:14,240
TYPES OF LIVED EXPERIENCE BUT

8447
05:28:14,240 --> 05:28:17,480
WITH THESE ARE HEARTS AND MINDS

8448
05:28:17,480 --> 05:28:19,800
ON COMMITTEES, ON PROJECTS IN

8449
05:28:19,800 --> 05:28:22,000
RESEARCH, WE'VE ALSO COME TO

8450
05:28:22,000 --> 05:28:23,760
REALIZE THAT THE WAY THAT

8451
05:28:23,760 --> 05:28:24,720
SYSTEMS HAVE BEEN STRUCTURED

8452
05:28:24,720 --> 05:28:26,560
HAVE BEEN DOING MORE HARM THAN

8453
05:28:26,560 --> 05:28:31,160
GOOD SO I WOULD JUST IS A SAY BE

8454
05:28:31,160 --> 05:28:35,680
ACCESSIBLE, OPEN, GET OUT OF

8455
05:28:35,680 --> 05:28:36,080
YOUR OWN WAY.

8456
05:28:36,080 --> 05:28:45,120
>>I WOULD SAY BE MORE

8457
05:28:45,120 --> 05:28:45,880
CONSIDERATE.

8458
05:28:45,880 --> 05:28:46,480
>>FROM RESEARCH
SPECIFICALLY,

8459
05:28:46,480 --> 05:28:48,800
FUNDERS ON THE CALL, YOU SHOULD

8460
05:28:48,800 --> 05:28:51,560
THINK ABOUT HOW TO INCLUDE THAT

8461
05:28:51,560 --> 05:28:53,120
RACE AND ETHNICITY QUESTION AND

8462
05:28:53,120 --> 05:28:55,520
REQUIRE EVEN AMONG THE PEOPLE

8463
05:28:55,520 --> 05:28:58,000
THAT YOU FUND OR RESEARCH YOU DO

8464
05:28:58,000 --> 05:28:59,320
FUND BECAUSE AGAIN OFTENTIMES

8465
05:28:59,320 --> 05:29:02,520
THAT VARIABLE IS IGNORED AND NOT

8466
05:29:02,520 --> 05:29:03,680
PUBLISHED ON, I ALSO THINK, YOU

8467
05:29:03,680 --> 05:29:06,560
KNOW, AGAIN THERE'S BEEN SOME

8468
05:29:06,560 --> 05:29:07,960
MOVEMENT OF INCLUDING

8469
05:29:07,960 --> 05:29:08,960
SELF-ADVOCATES IN RESEARCH BUT A

8470
05:29:08,960 --> 05:29:10,160
LOT OF TIMES SOME RESEARCH

8471
05:29:10,160 --> 05:29:12,760
THAT'S OUT THERE AND FORGIVE ME

8472
05:29:12,760 --> 05:29:15,520
FOR SAYING THIS, IT'S FOR SHOW

8473
05:29:15,520 --> 05:29:17,160
AND THOSE VOICES ARE NOT

8474
05:29:17,160 --> 05:29:20,640
INCLUDED OR INCORPORATED INTO

8475
05:29:20,640 --> 05:29:21,480
RESEARCH AND REALLY VALUED AS

8476
05:29:21,480 --> 05:29:23,400
PART, AGAIN, AS A MEMBER OF

8477
05:29:23,400 --> 05:29:25,600
THE -- GIVEN A SEAT AT THE TABLE

8478
05:29:25,600 --> 05:29:30,000
IN TERMS OF THEIR INPUT, I ALSO

8479
05:29:30,000 --> 05:29:33,920
THINK A LOT ABOUT HOW WE SORT OF

8480
05:29:33,920 --> 05:29:35,320
RETHINK SOME OF OUR PARTNERSHIPS

8481
05:29:35,320 --> 05:29:37,640
AND SO FOCUSING ON MORE

8482
05:29:37,640 --> 05:29:38,640
COMMUNITY PARTNERED RESEARCH SO

8483
05:29:38,640 --> 05:29:40,680
HOW WE MIGHT PARTNER WITH

8484
05:29:40,680 --> 05:29:43,280
ORGANIZATIONS LIKE CAMILLE'S OR

8485
05:29:43,280 --> 05:29:45,160
LYDIA'S IN RESEARCH TO SUPPORT

8486
05:29:45,160 --> 05:29:46,800
FUNDING OF THE ORGANIZATIONS

8487
05:29:46,800 --> 05:29:48,760
THAT ALSO ELEVATE THEIR WORK,

8488
05:29:48,760 --> 05:29:51,320
BECAUSE THE SAD TRUTH FROM AN

8489
05:29:51,320 --> 05:29:53,280
ACADEMICS PERSPECTIVE, IT'S THE

8490
05:29:53,280 --> 05:29:55,240
GRANT DOLLARS AND PUBLICATIONS

8491
05:29:55,240 --> 05:29:56,960
YOU GET SCORED ON OR EVALUATED

8492
05:29:56,960 --> 05:29:58,760
ON, AND SO IF WE CAN ELEVATE THE

8493
05:29:58,760 --> 05:30:00,480
VOICES OF THE PEOPLE THAT ARE

8494
05:30:00,480 --> 05:30:02,040
ACTUALLY DOING THIS WORK AND

8495
05:30:02,040 --> 05:30:05,360
PARTNER WITH THEM I WAS THINKING

8496
05:30:05,360 --> 05:30:07,000
ABOUT WHAT LYDIA WAS SAYING WHEN

8497
05:30:07,000 --> 05:30:11,040
THEY WERE TALKING, THEY CLEARLY

8498
05:30:11,040 --> 05:30:12,240
ARTICULATED SO MANY AWESOME

8499
05:30:12,240 --> 05:30:13,680
RESEARCH QUESTIONS THAT REALLY

8500
05:30:13,680 --> 05:30:15,200
WOULD MAKE AN IMPACT IN TERMS OF

8501
05:30:15,200 --> 05:30:17,160
THE SERVICE ACCESS AND DELIVERY

8502
05:30:17,160 --> 05:30:20,120
IN THE SYSTEM, SO WE THINK MORE

8503
05:30:20,120 --> 05:30:21,320
PARTNERSHIPS IN THE RESEARCH

8504
05:30:21,320 --> 05:30:22,840
WORLD AND AGAIN IF YOU'RE

8505
05:30:22,840 --> 05:30:24,520
WRITING A FUNDING MECHANISM OR

8506
05:30:24,520 --> 05:30:26,360
PAR OR SOMETHING INCLUDING THAT

8507
05:30:26,360 --> 05:30:27,880
AS A REQUIREMENT WOULD BE

8508
05:30:27,880 --> 05:30:28,320
AWESOME.

8509
05:30:28,320 --> 05:30:31,600
AND GOING BACK TO SOMETHING

8510
05:30:31,600 --> 05:30:34,360
SOMEONE ELSE SAID EARLIER ABOUT

8511
05:30:34,360 --> 05:30:36,080
HAVING MORE BIPOC RESEARCHERS

8512
05:30:36,080 --> 05:30:37,640
THAT'S ALSO SOMETHING SOME

8513
05:30:37,640 --> 05:30:38,960
FUNDING MECHANISMS CAN CALL OUT

8514
05:30:38,960 --> 05:30:43,240
IF YOU ARE ELEVATING A JUNIOR

8515
05:30:43,240 --> 05:30:45,320
SCIENTIST OR RESEARCHER OF COLOR

8516
05:30:45,320 --> 05:30:47,920
OR TRAINEES OF COLOR, THAT'S ALL

8517
05:30:47,920 --> 05:30:49,600
REALLY IMPORTANT TO BUILD THE

8518
05:30:49,600 --> 05:30:52,080
WORKFORCE FOR THE RESEARCH SIDE.

8519
05:30:52,080 --> 05:30:54,840
THAT'S THE ONLY SIDE I CAN SPEAK

8520
05:30:54,840 --> 05:30:55,120
OF.

8521
05:30:55,120 --> 05:30:59,120
SORRY, STILL RECOVER FROM A

8522
05:30:59,120 --> 05:31:00,200
LINGERING COLD FROM ALL THE

8523
05:31:00,200 --> 05:31:00,680
YOUNG CHILDREN.

8524
05:31:00,680 --> 05:31:02,160
>>AGAIN TO BUILD ON SOME
THINGS

8525
05:31:02,160 --> 05:31:05,640
THAT JILL TALKED ABOUT IN TERMS

8526
05:31:05,640 --> 05:31:07,000
OF FUNDERS OF RESEARCH, FIRST WE

8527
05:31:07,000 --> 05:31:09,920
DO HAVE TO FUND MORE LIFESPAN

8528
05:31:09,920 --> 05:31:11,440
RESEARCH ACROSS, YOU KNOW, IN

8529
05:31:11,440 --> 05:31:12,600
GENERAL, RIGHT?

8530
05:31:12,600 --> 05:31:15,200
THE MAJORITY OF DELORES STILL GO

8531
05:31:15,200 --> 05:31:18,640
INTO BIOLOGICAL RESEARCH SO

8532
05:31:18,640 --> 05:31:23,880
BEING ABLE TO UNDERSTAND NOT

8533
05:31:23,880 --> 05:31:25,160
ONLY CHILDREN BUT ADULTS, AGING

8534
05:31:25,160 --> 05:31:27,360
PEOPLE GOING THROUGH THE AGING

8535
05:31:27,360 --> 05:31:29,920
PROCESS THAT ARE AUTISTIC AND

8536
05:31:29,920 --> 05:31:31,920
HAVE IDDs, BUT THEN MAKING

8537
05:31:31,920 --> 05:31:36,160
SURE YOU'RE FEDERAL

8538
05:31:36,160 --> 05:31:39,840
GOVERNMENT -- -- MAKING SURE

8539
05:31:39,840 --> 05:31:41,800
YOU'RE NARROWING ON BIPOC

8540
05:31:41,800 --> 05:31:45,320
RESEARCH, IT'S IMPORTANT TO DO

8541
05:31:45,320 --> 05:31:46,560
STUDIES WITH PARTICULAR

8542
05:31:46,560 --> 05:31:52,880
POPULATIONS, WHETHER IT'S

8543
05:31:52,880 --> 05:31:56,080
CULTURAL ADAPTATION PROJECTS, SO

8544
05:31:56,080 --> 05:31:57,160
BRINGING THAT REALLY FOCUSING ON

8545
05:31:57,160 --> 05:32:00,120
COMMUNITIES AND WHAT THEY NEED

8546
05:32:00,120 --> 05:32:01,320
AND WANT.

8547
05:32:01,320 --> 05:32:03,040
AND OF COURSE WHAT JILL SAID

8548
05:32:03,040 --> 05:32:04,280
ABOUT THE WORKFORCE, THERE ARE

8549
05:32:04,280 --> 05:32:07,960
SOME AGENCIES DOING A BETTER JOB

8550
05:32:07,960 --> 05:32:10,960
THAN OTHERS AT IDENTIFYING WHO

8551
05:32:10,960 --> 05:32:13,200
IS IN THE WORKFORCE, NIDILRR,

8552
05:32:13,200 --> 05:32:15,320
HOW THEY NOT ONLY REQUIRE IN

8553
05:32:15,320 --> 05:32:18,040
YOUR PROPOSAL TO INDICATE WHO'S

8554
05:32:18,040 --> 05:32:20,360
YOUR TEAM AND WHAT THEIR

8555
05:32:20,360 --> 05:32:22,120
IDENTITIES ARE, INCLUDING PEOPLE

8556
05:32:22,120 --> 05:32:23,760
WITH DISABILITIES, MAKING SURE

8557
05:32:23,760 --> 05:32:25,720
PEOPLE WITH DISABILITIES ARE

8558
05:32:25,720 --> 05:32:27,480
RESEARCHERS, AND IN ADDITION TO

8559
05:32:27,480 --> 05:32:28,680
RACIAL AND ETHNIC MINORITIES,

8560
05:32:28,680 --> 05:32:30,520
THEY WANT YOU TO IDENTIFY HOW

8561
05:32:30,520 --> 05:32:32,400
YOU'RE GOING TO RECRUIT, HOW

8562
05:32:32,400 --> 05:32:34,360
YOU'RE GOING TO -- FOR POSITIONS

8563
05:32:34,360 --> 05:32:39,480
YOU HAVEN'T HIRED YET HOW ARE

8564
05:32:39,480 --> 05:32:42,480
YOU GOING TO RECRUIT, WAYS

8565
05:32:42,480 --> 05:32:46,960
AGENCIES CAN BORROW IN SOME OF

8566
05:32:46,960 --> 05:32:47,400
THOSE PRACTICES.

8567
05:32:47,400 --> 05:32:49,240
>>I'LL JUST SAY FIRST
SOME OF

8568
05:32:49,240 --> 05:32:51,560
THESE ISSUES LIKE STRUCTURAL

8569
05:32:51,560 --> 05:32:52,880
RACISM, RACIAL EQUITY, HEALTH

8570
05:32:52,880 --> 05:32:56,240
EQUITY, CAN FEEL LIKE BIG

8571
05:32:56,240 --> 05:32:56,640
ISSUES.

8572
05:32:56,640 --> 05:32:58,840
THAT CAN PREVENT PEOPLE FROM

8573
05:32:58,840 --> 05:33:00,280
TAKING ACTION, THESE ARE BIG

8574
05:33:00,280 --> 05:33:02,600
ISSUES THAT REQUIRE SOME BIG

8575
05:33:02,600 --> 05:33:02,840
FUNDING.

8576
05:33:02,840 --> 05:33:05,040
SO WE HAVE TO THINK ABOUT

8577
05:33:05,040 --> 05:33:07,760
MECHANISMS A LITTLE BIT

8578
05:33:07,760 --> 05:33:10,040
DIFFERENTLY TO ADDRESS

8579
05:33:10,040 --> 05:33:11,280
STRUCTURAL RACISM, RIGHT, LIKE

8580
05:33:11,280 --> 05:33:14,000
THAT IS A DIFFERENT LANDSCAPE OF

8581
05:33:14,000 --> 05:33:16,280
RESEARCH, AND IF WE REALLY WANT

8582
05:33:16,280 --> 05:33:18,560
TO CHANGE THINGS, IT MAKES US

8583
05:33:18,560 --> 05:33:20,200
HAVE TO THINK ABOUT AND ENVISION

8584
05:33:20,200 --> 05:33:25,920
RESEARCH AND HOW IT GETS FUNDED

8585
05:33:25,920 --> 05:33:26,240
DIFFERENTLY.

8586
05:33:26,240 --> 05:33:27,560
AND ALL THE RESEARCHERS ARE IN

8587
05:33:27,560 --> 05:33:29,440
AGREEMENT A LITTLE BIT YOU KNOW

8588
05:33:29,440 --> 05:33:30,720
COMMUNITY PARTNER RESEARCH IS

8589
05:33:30,720 --> 05:33:32,440
REALLY IMPORTANT BUT IF WE WANT

8590
05:33:32,440 --> 05:33:33,760
TO MEANINGFULLY INCLUDE OUR

8591
05:33:33,760 --> 05:33:35,440
COMMUNITY PARTNERS, WE HAVE TO

8592
05:33:35,440 --> 05:33:37,080
HAVE MECHANISMS IN PLACE TO

8593
05:33:37,080 --> 05:33:40,480
REALLY SUPPORT AND FUND THEM.

8594
05:33:40,480 --> 05:33:44,760
SO, CURRENT GRANTS, TRYING TO

8595
05:33:44,760 --> 05:33:45,320
RESEARCH FUND RESEARCH

8596
05:33:45,320 --> 05:33:47,280
OPPORTUNITY, WE DON'T HAVE THE

8597
05:33:47,280 --> 05:33:49,240
FUNDS TO REALLY SUPPORT THE WORK

8598
05:33:49,240 --> 05:33:50,760
THAT THEY ARE DOING.

8599
05:33:50,760 --> 05:33:52,400
CAMILLE AND I HAVE BEEN TRYING

8600
05:33:52,400 --> 05:33:53,760
TO DO COMMUNITY PARTNER RESEARCH

8601
05:33:53,760 --> 05:33:56,440
BUT I THINK OF CAMILLE AS A TRUE

8602
05:33:56,440 --> 05:33:56,680
PARTNER.

8603
05:33:56,680 --> 05:33:59,360
AND I WANT TO THINK ABOUT HOW WE

8604
05:33:59,360 --> 05:34:00,760
CAN SUPPORT THE WORK HER

8605
05:34:00,760 --> 05:34:02,000
ORGANIZATION IS DOING.

8606
05:34:02,000 --> 05:34:03,840
SO THINKING ABOUT DIFFERENTLY IF

8607
05:34:03,840 --> 05:34:07,040
WE'RE GOING TO MOVE TOWARD THIS

8608
05:34:07,040 --> 05:34:09,320
SORT OF DOWN THIS PATHWAY OF

8609
05:34:09,320 --> 05:34:10,880
COMMUNITY PARTNERED RESEARCH,

8610
05:34:10,880 --> 05:34:13,800
HOW ARE WE PUTTING MECHANISMS IN

8611
05:34:13,800 --> 05:34:15,920
PLACE TO REALLY TREAT THEM TO BE

8612
05:34:15,920 --> 05:34:18,400
ABLE TO TREAT THEM AS PARTNERS

8613
05:34:18,400 --> 05:34:19,840
IN THAT PROCESS.

8614
05:34:19,840 --> 05:34:22,680
SO I THINK IT'S NOT JUST THE

8615
05:34:22,680 --> 05:34:24,320
AMOUNT OF FUNDING THOUGH, IT'S

8616
05:34:24,320 --> 05:34:25,960
THE KINDS OF RESEARCH QUESTIONS

8617
05:34:25,960 --> 05:34:28,000
THAT ARE BEING ASKED.

8618
05:34:28,000 --> 05:34:32,360
SO, WITH ALL OF OUR IDENTITIES

8619
05:34:32,360 --> 05:34:33,720
THERE ARE THINGS THAT LEAD TO

8620
05:34:33,720 --> 05:34:36,760
RISK BUT ALSO LOTS OF THINGS

8621
05:34:36,760 --> 05:34:38,000
THAT LEAD TO RESILIENCE.

8622
05:34:38,000 --> 05:34:39,280
ALSO UNDERSTANDING THE CULTURAL

8623
05:34:39,280 --> 05:34:41,480
ASSETS AND WEALTH OF

8624
05:34:41,480 --> 05:34:43,240
MARGINALIZED COMMUNITIES SO THAT

8625
05:34:43,240 --> 05:34:47,720
WE'RE THINKING ABOUT PROTECTIVE

8626
05:34:47,720 --> 05:34:50,480
MECHANISMS IN PLACE LIKE GYASI'S

8627
05:34:50,480 --> 05:34:53,200
MOTHER HAD HIM READ ABOUT BEING

8628
05:34:53,200 --> 05:34:59,880
BLACK, WE KNOW THOSE PRACTICES

8629
05:34:59,880 --> 05:35:02,200
ARE PROTECTIVE MECHANISMS.

8630
05:35:02,200 --> 05:35:05,000
THERE ARE QUESTIONS WE SHOULD BE

8631
05:35:05,000 --> 05:35:06,200
ASKING TO REALLY ADVANCE

8632
05:35:06,200 --> 05:35:07,840
RESEARCH ON RACIAL AND ETHNIC

8633
05:35:07,840 --> 05:35:09,520
COMMUNITIES, SO IT'S NOT JUST

8634
05:35:09,520 --> 05:35:16,400
AMOUNT OF MONEY BUT THE

8635
05:35:16,400 --> 05:35:20,760
QUESTIONS THAT ARE BEING ASKED

8636
05:35:20,760 --> 05:35:24,040
AND WHO IS ASKING, TO CREATE

8637
05:35:24,040 --> 05:35:26,360
MORE DIVERSE IN ALL WAYS,

8638
05:35:26,360 --> 05:35:27,560
NEURODIVERSE, GENDER DIVERSE,

8639
05:35:27,560 --> 05:35:29,200
THAT WILL HELP LEAD TO THE

8640
05:35:29,200 --> 05:35:30,200
ASKING OF IMPORTANT QUESTIONS

8641
05:35:30,200 --> 05:35:32,160
BUT ALSO HELP US THINK ABOUT HOW

8642
05:35:32,160 --> 05:35:34,240
WE'RE ADDRESSING SOME OF THESE

8643
05:35:34,240 --> 05:35:41,120
MORE COMPLEX ISSUES AROUND

8644
05:35:41,120 --> 05:35:41,840
EQUITY AND STRUCTURAL RACISM.

8645
05:35:41,840 --> 05:35:45,400
>>I WANT TO ADDRESS THE
FUNDING

8646
05:35:45,400 --> 05:35:45,600
PIECE.

8647
05:35:45,600 --> 05:35:48,080
ONE THING, THE FUNDING PIECE IS

8648
05:35:48,080 --> 05:35:50,080
ACTUALLY PART OF THE PROBLEM OF

8649
05:35:50,080 --> 05:35:50,640
RACISM.

8650
05:35:50,640 --> 05:35:52,080
ONE REASON THERE'S SO LITTLE

8651
05:35:52,080 --> 05:35:54,040
FUNDING IS BECAUSE FOR THE LAST

8652
05:35:54,040 --> 05:35:57,240
40 YEARS OR SO THERE'S BEEN A

8653
05:35:57,240 --> 05:35:58,640
DEINVESTMENT IN THE GOVERNMENT.

8654
05:35:58,640 --> 05:36:08,040
SO WE NEED TO FIGHT AGAINST THAT

8655
05:36:08,040 --> 05:36:08,480
TOO.

8656
05:36:08,480 --> 05:36:09,600
>>THANK YOU FOR WONDERFUL

8657
05:36:09,600 --> 05:36:10,640
COMMENTS AND ROBUST AND ENTIRE

8658
05:36:10,640 --> 05:36:16,600
ACTIVE  -- INTERACTIVE

8659
05:36:16,600 --> 05:36:16,920
DISCUSSION.

8660
05:36:16,920 --> 05:36:20,080
WE APPRECIATE YOUR PRESENCE WITH

8661
05:36:20,080 --> 05:36:21,720
US AND APPRECIATE THIS LAST BIT

8662
05:36:21,720 --> 05:36:23,560
WHERE YOU ALSO SHARED SOME OF

8663
05:36:23,560 --> 05:36:24,480
YOUR TAKEHOME MESSAGES FOR

8664
05:36:24,480 --> 05:36:26,080
PEOPLE ON THE COMMITTEE.

8665
05:36:26,080 --> 05:36:27,320
THANK YOU SO MUCH.

8666
05:36:27,320 --> 05:36:28,520
SHELLI, I DON'T KNOW IF YOU

8667
05:36:28,520 --> 05:36:33,560
WOULD LIKE TO COMMENT AS WELL?

8668
05:36:33,560 --> 05:36:34,120
>>THANKS, SUSAN.

8669
05:36:34,120 --> 05:36:36,840
I WANT TO ONCE AGAIN THANK ALL

8670
05:36:36,840 --> 05:36:38,680
THE SPEAKERS, THE PANELISTS,

8671
05:36:38,680 --> 05:36:40,000
EVERYONE WHO HAD AN OPPORTUNITY

8672
05:36:40,000 --> 05:36:41,520
TO PRESENT TODAY.

8673
05:36:41,520 --> 05:36:44,400
WE APPRECIATE THAT.

8674
05:36:44,400 --> 05:36:46,560
I WANT TO THANK THE COMMITTEE

8675
05:36:46,560 --> 05:36:48,640
FOR ENGAGEMENT, GOOD QUESTIONS,

8676
05:36:48,640 --> 05:36:49,160
THOUGHTS, RECOMMENDATIONS

8677
05:36:49,160 --> 05:36:52,040
THROUGHOUT THE DAY TO MAKE THE

8678
05:36:52,040 --> 05:36:53,680
COMMITTEE MORE PRO-ACTIVE AND

8679
05:36:53,680 --> 05:36:54,880
IMPACTFUL IN THE BIGGER SENSE OF

8680
05:36:54,880 --> 05:36:55,200
THE WORD.

8681
05:36:55,200 --> 05:36:58,160
I I WANT TO THANK SUSAN AND HER

8682
05:36:58,160 --> 05:36:59,240
OFFICE FOR ORGANIZING THE

8683
05:36:59,240 --> 05:37:02,320
MEETING AND DOING SUCH A GREAT

8684
05:37:02,320 --> 05:37:03,960
JOB AT ORGANIZING AND

8685
05:37:03,960 --> 05:37:05,120
MODERATING.

8686
05:37:05,120 --> 05:37:06,720
AGAIN, THANK YOU.

8687
05:37:06,720 --> 05:37:08,440
IT'S BEEN MY PLEASURE TO BE PART

8688
05:37:08,440 --> 05:37:09,840
OF THIS TODAY.

8689
05:37:09,840 --> 05:37:10,600
>>THANK YOU.

8690
05:37:10,600 --> 05:37:11,360
>>THANK YOU.

8691
05:37:11,360 --> 05:37:12,720
>>THANKS TO EVERYONE WHO

8692
05:37:12,720 --> 05:37:14,040
PARTICIPATED IN THIS SESSION.

8693
05:37:14,040 --> 05:37:15,800
WE JUST HAVE A FEW MINUTES TO

8694
05:37:15,800 --> 05:37:16,400
WRAP UP THE MEETING.

8695
05:37:16,400 --> 05:37:19,280
WE'RE GOING TO GO TO A ROUND

8696
05:37:19,280 --> 05:37:20,040
ROBIN SESSION.

8697
05:37:20,040 --> 05:37:22,480
SO YOU'LL SEE IN YOUR PACKETS

8698
05:37:22,480 --> 05:37:25,200
YOU HAVE A ROUND ROBIN PACKET

8699
05:37:25,200 --> 05:37:28,040
WHERE MEMBERS OF THE COMMITTEE

8700
05:37:28,040 --> 05:37:30,040
SHARED UPDATES FROM AROUND THE

8701
05:37:30,040 --> 05:37:31,760
FEDERAL AGENCIES AND PRIVATE

8702
05:37:31,760 --> 05:37:33,400
ORGANIZATIONS AND IN VISUALS AS

8703
05:37:33,400 --> 05:37:33,600
WELL.

8704
05:37:33,600 --> 05:37:35,280
SO WE HAVE A FEW MINUTES IF

8705
05:37:35,280 --> 05:37:36,680
ANYONE WANTS TO SPEAK ABOUT

8706
05:37:36,680 --> 05:37:37,520
THEIR UPDATES OR EVEN IF YOU

8707
05:37:37,520 --> 05:37:40,040
DIDN'T CONTRIBUTE TO THE PACKET

8708
05:37:40,040 --> 05:37:42,000
AND YOU HAVE AN UPDATE WE CAN

8709
05:37:42,000 --> 05:37:52,560
HEAR YOUR UPDATES AT THIS TIME. 

8710
05:37:58,960 --> 05:38:00,960
IS THERE ANYONE THAT WOULD LIKE

8711
05:38:00,960 --> 05:38:02,520
TO SHARE AN UPDATE VERBALLY OR

8712
05:38:02,520 --> 05:38:04,920
IN THE COMMENTS?

8713
05:38:04,920 --> 05:38:08,000
OH, I SEE THAT MARENEKA HAS ONE

8714
05:38:08,000 --> 05:38:11,280
BUT NEEDS A MOMENT.

8715
05:38:11,280 --> 05:38:12,760
>>TWO HANDS.

8716
05:38:12,760 --> 05:38:13,240
ALLISON AND SUSAN.

8717
05:38:13,240 --> 05:38:15,560
>>ALL RIGHT.

8718
05:38:15,560 --> 05:38:17,040
THANK YOU.

8719
05:38:17,040 --> 05:38:17,280
ALLISON?

8720
05:38:17,280 --> 05:38:21,440
>>YEAH, HI. 

8721
05:38:21,440 --> 05:38:25,920
ALLISON FROM SOCIAL SECURE.

8722
05:38:25,920 --> 05:38:34,000
I JUST WANTED TO DRAW ATTENTION

8723
05:38:34,000 --> 05:38:36,080
TO GRANT ADMINISTRATIVE OPENING,

8724
05:38:36,080 --> 05:38:37,280
POSTING SOLICITATION FOR THE NEW

8725
05:38:37,280 --> 05:38:44,920
GRANTED  ADMINISTRATOR FOR THE

8726
05:38:44,920 --> 05:38:45,920
SMALL GRANT PROGRAM.

8727
05:38:45,920 --> 05:38:48,120
IT'S DUE TO COME OUT THIS MONTH

8728
05:38:48,120 --> 05:38:50,960
OR MAY, SO PLEASE LOOK IN THE

8729
05:38:50,960 --> 05:38:54,600
PACKET AND IF YOU'RE AN

8730
05:38:54,600 --> 05:38:58,760
ORGANIZATION THAT DOES GRANT

8731
05:38:58,760 --> 05:39:00,480
ADMINISTRATION OR A UNIVERSITY,

8732
05:39:00,480 --> 05:39:03,120
PLEASE TAKE A LOOK AND APPLY.

8733
05:39:03,120 --> 05:39:06,840
THANK YOU.

8734
05:39:06,840 --> 05:39:08,240
>>THANK YOU, ALLISON.

8735
05:39:08,240 --> 05:39:10,680
>>GOOD AFTERNOON.

8736
05:39:10,680 --> 05:39:12,520
I REPRESENT NIDCD WITH DR.

8737
05:39:12,520 --> 05:39:12,880
TUCCI.

8738
05:39:12,880 --> 05:39:20,360
I DID WANT TO MENTION IN JANUARY

8739
05:39:20,360 --> 05:39:25,240
WE HAD AN NIDCD-SPONSORED

8740
05:39:25,240 --> 05:39:25,800
WEBINAR, MINIMALLY SPEAKING

8741
05:39:25,800 --> 05:39:27,560
INDIVIDUALS, TO PROMOTE LANGUAGE

8742
05:39:27,560 --> 05:39:31,160
AND COMMUNICATION. 

8743
05:39:31,160 --> 05:39:33,560
ONE OF OUR MEMBERS WAS A

8744
05:39:33,560 --> 05:39:34,040
CO-CHAIR.

8745
05:39:34,040 --> 05:39:36,320
WE NOW HAVE ON OUR NIDCD WEBSITE

8746
05:39:36,320 --> 05:39:39,400
A SUMMARY OF THE MEETING,

8747
05:39:39,400 --> 05:39:41,640
AGENDA, LIST OF THE

8748
05:39:41,640 --> 05:39:49,480
PARTICIPANTS, AND SOME OF THE

8749
05:39:49,480 --> 05:39:49,920
PARTICIPANT-SUBJECTED

8750
05:39:49,920 --> 05:39:52,640
PUBLICATIONS, ON THE NIDCD

8751
05:39:52,640 --> 05:39:53,200
WEBSITE.

8752
05:39:53,200 --> 05:39:54,600
WE'RE CONTINUING TO ADDRESS

8753
05:39:54,600 --> 05:39:57,280
RESEARCH NEEDS OF MINIMALLY

8754
05:39:57,280 --> 05:39:59,520
VERBAL NON-SPEAKING INDIVIDUALS,

8755
05:39:59,520 --> 05:40:06,320
AND IN FACT YESTERDAY IN RECORD

8756
05:40:06,320 --> 05:40:08,480
SPEED NIDCD NOTICE OF

8757
05:40:08,480 --> 05:40:10,800
SIGNIFICANT INTEREST, NOSI, WAS

8758
05:40:10,800 --> 05:40:13,680
PUBLISHED IN THE NIH GUIDE,

8759
05:40:13,680 --> 05:40:15,920
FOCUSING ON MANY OF THE AREAS

8760
05:40:15,920 --> 05:40:20,760
THAT WERE HIGHLIGHTED.

8761
05:40:20,760 --> 05:40:24,160
SINCE THE WEBINAR NIDCD HAS MET

8762
05:40:24,160 --> 05:40:25,120
WITH MINIMALLY VERBAL

8763
05:40:25,120 --> 05:40:26,520
NON-SPEAKING INDIVIDUALS AS WELL

8764
05:40:26,520 --> 05:40:28,160
AS AGENCIES THAT SERVE THEM AND

8765
05:40:28,160 --> 05:40:30,720
WE'RE GOING TO CONTINUE TO DO

8766
05:40:30,720 --> 05:40:31,600
SO.

8767
05:40:31,600 --> 05:40:33,400
FINALLY WE WILL KEEP EVERYBODY

8768
05:40:33,400 --> 05:40:35,160
INFORMED ABOUT ANY FUTURE

8769
05:40:35,160 --> 05:40:36,320
FUNDING OPPORTUNITIES THAT ARE

8770
05:40:36,320 --> 05:40:38,920
FOCUSED ON THIS POPULATION.

8771
05:40:38,920 --> 05:40:39,400
THANK YOU, SUSAN.

8772
05:40:39,400 --> 05:40:42,120
>>THANK YOU, JUDITH.

8773
05:40:42,120 --> 05:40:43,320
VIDEO IS AVAILABLE FOR PEOPLE TO

8774
05:40:43,320 --> 05:40:45,400
WATCH THE MEETING AS WELL,

8775
05:40:45,400 --> 05:40:45,600
RIGHT?

8776
05:40:45,600 --> 05:40:46,920
>>ABSOLUTELY.

8777
05:40:46,920 --> 05:40:48,560
BOTH DAYS.

8778
05:40:48,560 --> 05:40:48,880
>>WONDERFUL.

8779
05:40:48,880 --> 05:40:50,960
IT'S IN THE ROUND ROBIN PACKET

8780
05:40:50,960 --> 05:40:52,280
AND EVENTS SECTION OF OUR

8781
05:40:52,280 --> 05:40:53,560
WEBSITE IF YOU'RE LOOKING FOR

8782
05:40:53,560 --> 05:40:54,560
IT.

8783
05:40:54,560 --> 05:41:04,000
SO THANK YOU.

8784
05:41:04,000 --> 05:41:04,440
AMANDA RYKERT?

8785
05:41:04,440 --> 05:41:07,040
>>I WANT TO POINT OUT,
YOU MAY

8786
05:41:07,040 --> 05:41:09,480
HAVE GOTTEN IT IN E-MAIL TODAY,

8787
05:41:09,480 --> 05:41:10,600
MAYBE NOT, NIDILRR IS MANDATED

8788
05:41:10,600 --> 05:41:14,320
BY CONGRESS TO COME UP WITH A

8789
05:41:14,320 --> 05:41:16,200
LONG RANGE PLAN AND LONG RANGE

8790
05:41:16,200 --> 05:41:18,120
PLAN SPANS FIVE YEARS.

8791
05:41:18,120 --> 05:41:22,240
AND SO FOR THE PAST YEAR,

8792
05:41:22,240 --> 05:41:23,760
NIDILRR INITIATED THE NEW

8793
05:41:23,760 --> 05:41:25,880
DEVELOPMENT OF THE NEW LONG

8794
05:41:25,880 --> 05:41:31,920
RANGE PLAN FOR 2024 TO 2028, AND

8795
05:41:31,920 --> 05:41:34,360
OUR DIRECTOR WAS GREAT ABOUT

8796
05:41:34,360 --> 05:41:36,360
GOING OUT AND GETTING INPUT FROM

8797
05:41:36,360 --> 05:41:41,720
THE FIELD AND FROM ALL SORTS OF

8798
05:41:41,720 --> 05:41:44,000
STAKEHOLDERS, AND SO NOW BASED

8799
05:41:44,000 --> 05:41:49,920
ON THAT FEEDBACK NIDILRR HAS

8800
05:41:49,920 --> 05:41:51,320
FINALIZE DIRECTION FOR NEW LONG

8801
05:41:51,320 --> 05:41:53,320
RANGE PLAN, HOLDING A WEBINAR

8802
05:41:53,320 --> 05:42:03,520
ON -- LET ME GET THE DATE RIGHT.

8803
05:42:03,520 --> 05:42:10,800
NOT SEEING THE DATE RIGHT NOW.

8804
05:42:10,800 --> 05:42:18,680
THAT'S SILLY. 

8805
05:42:18,680 --> 05:42:19,680
I BELIEVE APRIL 16.

8806
05:42:19,680 --> 05:42:21,120
I CAN SEND THE INFORMATION.

8807
05:42:21,120 --> 05:42:25,440
YOU DO NEED TO REGISTER FOR THE

8808
05:42:25,440 --> 05:42:32,280
WEBINAR IF YOU WANT TO ATTEND,

8809
05:42:32,280 --> 05:42:34,320
KEY THEMES FOR LONG RANGE

8810
05:42:34,320 --> 05:42:37,160
PLANNED THAT IMPACT AND STEER

8811
05:42:37,160 --> 05:42:43,560
WHERE THE MONEY IS OFFERED FOR

8812
05:42:43,560 --> 05:42:44,560
DISABILITY-RELATED RESEARCH.

8813
05:42:44,560 --> 05:42:44,800
THANK YOU.

8814
05:42:44,800 --> 05:42:49,080
>>IF YOU HAVE AN UPDATED
LINK

8815
05:42:49,080 --> 05:42:54,040
YOU CAN ADDED IN THE ROUND ROBIN

8816
05:42:54,040 --> 05:42:55,120
PACKET, EVENTS PAGE.

8817
05:42:55,120 --> 05:43:00,800
>>THANK YOU.

8818
05:43:00,800 --> 05:43:03,080
>>NEXT SCOTT ROBERTSON.

8819
05:43:03,080 --> 05:43:04,560
>>THANKS, SUSAN.

8820
05:43:04,560 --> 05:43:09,040
I KNOW WE HAVE A FEW UPDATES FOR

8821
05:43:09,040 --> 05:43:10,320
OFFICE OF DISABILITY EMPLOYMENT

8822
05:43:10,320 --> 05:43:13,640
POLICY AT DOL IN THE UPDATES.

8823
05:43:13,640 --> 05:43:16,720
I WANT TO SPOTLIGHT A COUPLE.

8824
05:43:16,720 --> 05:43:19,960
ONE IS JOB ACCOMMODATION

8825
05:43:19,960 --> 05:43:20,880
NETWORK.

8826
05:43:20,880 --> 05:43:24,880
MANY ARE FAMILIAR WITH IT, A

8827
05:43:24,880 --> 05:43:26,640
WEBINAR TRAINING SESSION ON ABLE

8828
05:43:26,640 --> 05:43:31,160
13 SO THAT'S A WEEK FROM THIS

8829
05:43:31,160 --> 05:43:34,000
COMING THURSDAY.

8830
05:43:34,000 --> 05:43:34,240
2:00.

8831
05:43:34,240 --> 05:43:36,080
REGISTRATION LINK ON THE UPDATES

8832
05:43:36,080 --> 05:43:37,280
LISTING IN TERMS OF THE BULLET

8833
05:43:37,280 --> 05:43:41,000
POINTS IN THERE IN TERMS OF

8834
05:43:41,000 --> 05:43:45,440
UPDATES, FREE, 2:00 ON APRIL 13.

8835
05:43:45,440 --> 05:43:48,560
AND THEN ON THE NEURODIVERSITY

8836
05:43:48,560 --> 05:43:49,640
END APPRENTICESHIP BY

8837
05:43:49,640 --> 05:43:51,480
HAPPENSTANCE A NUMBER OF TIMES,

8838
05:43:51,480 --> 05:43:55,240
SO I THINK SOME FOLKS KNOW WE

8839
05:43:55,240 --> 05:44:00,200
HAVE A PROJECT CALLED DEPARTMENT

8840
05:44:00,200 --> 05:44:03,880
OF INCLUSIVE APPRENTICESHIP, AND

8841
05:44:03,880 --> 05:44:10,480
SHAMELESS SELF-PLUG, THE LATEST

8842
05:44:10,480 --> 05:44:12,880
PODCAST EPISODE FEATURES MYSELF

8843
05:44:12,880 --> 05:44:15,040
DISCUSSING INTERSECTION ON

8844
05:44:15,040 --> 05:44:16,040
NEURODIVERSITY INCLUDING AUTISM

8845
05:44:16,040 --> 05:44:18,320
AND ACCESS TO APPRENTICESHIPS

8846
05:44:18,320 --> 05:44:20,080
WITH SUPPORT SYSTEMS AND

8847
05:44:20,080 --> 05:44:24,560
SERVICES FOR SUCCESS TO SUPPORT

8848
05:44:24,560 --> 05:44:25,760
CAREER PATHWAYS FOR FOLKS,

8849
05:44:25,760 --> 05:44:28,080
FIELDS, JOB AREAS THAT FIT

8850
05:44:28,080 --> 05:44:28,960
SKILLS, TALENTS, STRENGTH AREAS,

8851
05:44:28,960 --> 05:44:33,200
SO YOU CAN FIND THE LINK THERE

8852
05:44:33,200 --> 05:44:41,560
IN THE PACKET BUT IT'S

8853
05:44:41,560 --> 05:44:42,760
INCLUSIVEAPPRENTICESHIP .ORG.

8854
05:44:42,760 --> 05:44:43,880
HAPPY NATIONAL AUTISM MONTH,

8855
05:44:43,880 --> 05:44:46,160
EXCITING TODAY IN TERMS OF

8856
05:44:46,160 --> 05:44:47,480
DISCUSSIONS.

8857
05:44:47,480 --> 05:44:50,000
THANK YOU, SUSAN AND EVERYBODY,

8858
05:44:50,000 --> 05:44:52,920
WHO ORCHESTRATES THESE SESSIONS

8859
05:44:52,920 --> 05:44:55,240
AND KEEPS THE ORDER AND THE

8860
05:44:55,240 --> 05:44:56,960
STATEMENT IN TERMS OF THE

8861
05:44:56,960 --> 05:45:01,800
DRAFTING FOR THAT.

8862
05:45:01,800 --> 05:45:02,920
THAT WAS ESPECIALLY GREAT.

8863
05:45:02,920 --> 05:45:06,960
AND I APPRECIATE THAT.

8864
05:45:06,960 --> 05:45:08,920
SO THIS IS A VERY ABLE

8865
05:45:08,920 --> 05:45:09,680
DISCUSSION TODAY.

8866
05:45:09,680 --> 05:45:10,840
>>THANK YOU SO MUCH.

8867
05:45:10,840 --> 05:45:16,040
AND I'M GOING TO READ A COMMENT

8868
05:45:16,040 --> 05:45:16,880
FROM MORENIKE.

8869
05:45:16,880 --> 05:45:20,880
AND SO THIS IS AN ANNOUNCEMENT

8870
05:45:20,880 --> 05:45:22,080
ABOUT PARTNERSHIP BETWEEN

8871
05:45:22,080 --> 05:45:27,160
UNIVERSITY OF PITTSBURGH, HOWARD

8872
05:45:27,160 --> 05:45:28,040
UNIVERSITY, FOUNDATIONS FOR

8873
05:45:28,040 --> 05:45:31,680
DIVERGENT MINDS, COLOR OF

8874
05:45:31,680 --> 05:45:33,440
AUTISM, AUTISTIC WOMEN NETWORK

8875
05:45:33,440 --> 05:45:35,760
HOSTING A FREE ONLINE EVENT,

8876
05:45:35,760 --> 05:45:44,920
SUFFERING IN SILENCE,

8877
05:45:44,920 --> 05:45:52,120
SUICIDALITY, APRIL 28th, A

8878
05:45:52,120 --> 05:45:52,360
WEBINAR.

8879
05:45:52,360 --> 05:45:55,360
WE WILL -- WE CAN ADD THIS EVENT

8880
05:45:55,360 --> 05:45:58,920
INTO THE ROUND ROBIN DOCUMENT

8881
05:45:58,920 --> 05:46:01,720
AND PUT IT ON THE WEBSITE SO

8882
05:46:01,720 --> 05:46:07,600
PEOPLE CAN ACCESS IT.

8883
05:46:07,600 --> 05:46:13,520
THANK YOU, MORENIKE.

8884
05:46:13,520 --> 05:46:14,640
NEXT, JALYNN.

8885
05:46:14,640 --> 05:46:15,040
>>THANK YOU.

8886
05:46:15,040 --> 05:46:17,240
THIS HAS BEEN AN EXCELLENT

8887
05:46:17,240 --> 05:46:18,440
MEETING TODAY, EXTREMELY

8888
05:46:18,440 --> 05:46:18,760
INFORMATIVE.

8889
05:46:18,760 --> 05:46:20,760
AND KUDOS TO ALL OF YOU FOR

8890
05:46:20,760 --> 05:46:23,000
PUTTING THIS TOGETHER, FOR THE

8891
05:46:23,000 --> 05:46:24,160
EXCELLENT PRESENTATIONS.

8892
05:46:24,160 --> 05:46:27,000
I WANTED TO MENTION APRIL 21 HAS

8893
05:46:27,000 --> 05:46:29,640
BEEN DECLARED IN CONGRESS AS

8894
05:46:29,640 --> 05:46:32,040
AUTISM AFTER 21 DAY.

8895
05:46:32,040 --> 05:46:33,040
AND MADISON HOUSE AUTISM

8896
05:46:33,040 --> 05:46:35,000
FOUNDATION HAS BEEN INSTRUMENTAL

8897
05:46:35,000 --> 05:46:38,080
IN WORKING ON THAT FOR THE LAST

8898
05:46:38,080 --> 05:46:40,600
20 YEARS, TRYING TO PROMOTE

8899
05:46:40,600 --> 05:46:41,680
INFORMATION WITHIN COMMUNITIES

8900
05:46:41,680 --> 05:46:42,800
ABOUT ADULT AUTISM.

8901
05:46:42,800 --> 05:46:46,080
AND WE WILL BE HAVING OUR ANNUAL

8902
05:46:46,080 --> 05:46:48,040
BREAKFAST, AND WE ARE FORTUNATE

8903
05:46:48,040 --> 05:46:51,640
TO HAVE DR. DANIELS WHO WILL BE

8904
05:46:51,640 --> 05:46:53,320
WITH US, AND WILL BE SHARING HER

8905
05:46:53,320 --> 05:46:54,840
INTERVIEWS WITH SOME OF THE

8906
05:46:54,840 --> 05:46:57,000
ARTISTS SHE HAS BEEN WORKING

8907
05:46:57,000 --> 05:46:58,560
WITH THIS MONTH.

8908
05:46:58,560 --> 05:47:00,280
BREAKFASTS ARE FOR THOUGHT

8909
05:47:00,280 --> 05:47:02,280
LEADERS BECAUSE WE HAVE FIGURED

8910
05:47:02,280 --> 05:47:07,000
THAT WE NEED TO EDUCATE

8911
05:47:07,000 --> 05:47:11,720
ESPECIALLY OUR NEWEST -- NEWLY

8912
05:47:11,720 --> 05:47:13,240
ELECTED OFFICIALS SO THEY

8913
05:47:13,240 --> 05:47:13,920
UNDERSTAND THEY HAVE

8914
05:47:13,920 --> 05:47:16,760
CONSTITUENCIES IN NEED OF THEIR

8915
05:47:16,760 --> 05:47:18,960
UNDERSTANDING AND THEIR EFFORTS

8916
05:47:18,960 --> 05:47:21,040
IN PUTTING PEOPLE INTO POLICY

8917
05:47:21,040 --> 05:47:24,240
AND INTO ALL OF THE THINKING

8918
05:47:24,240 --> 05:47:26,520
THEY MAKE IN THE COMMUNITY.

8919
05:47:26,520 --> 05:47:28,040
WE'VE SEEN MOVEMENT FORWARD.

8920
05:47:28,040 --> 05:47:29,000
WE'RE COMMUNITY BASED TRYING TO

8921
05:47:29,000 --> 05:47:31,640
SEE WHAT WE CAN DO, IN

8922
05:47:31,640 --> 05:47:33,480
COMMUNITIES, AND WE'RE WORKING

8923
05:47:33,480 --> 05:47:34,360
ON A PILOT PROGRAM ACROSS THE

8924
05:47:34,360 --> 05:47:37,880
COUNTRY ON THE OTHER SIDE OF THE

8925
05:47:37,880 --> 05:47:39,920
COUNTRY WITH THE NUMEROUS

8926
05:47:39,920 --> 05:47:41,480
COMMUNITIES AND ORGANIZATIONS IN

8927
05:47:41,480 --> 05:47:42,760
DOING SUCH.

8928
05:47:42,760 --> 05:47:45,520
WE WILL HAVE A NEW DOCUMENTARY,

8929
05:47:45,520 --> 05:47:47,280
WE DO MANY DOCUMENTARIES, SO

8930
05:47:47,280 --> 05:47:49,440
PEOPLE WHO MAY NOT FEEL

8931
05:47:49,440 --> 05:47:50,880
COMFORTABLE IN BEING IN CROWDS

8932
05:47:50,880 --> 05:47:53,840
CAN ALSO HAVE THEIR VOICE HEARD

8933
05:47:53,840 --> 05:47:55,800
AND PEOPLE CAN SEE WHO THEY ARE

8934
05:47:55,800 --> 05:47:57,440
AND UNDERSTAND THEIR STORIES.

8935
05:47:57,440 --> 05:47:59,440
AND WE ALSO CONTINUE TO WORK IN

8936
05:47:59,440 --> 05:48:01,640
THE NATIONAL PROGRAM ON MENTAL

8937
05:48:01,640 --> 05:48:02,400
HEALTH.

8938
05:48:02,400 --> 05:48:06,480
BUT REMEMBER AUTISM AFTER 21 DAY

8939
05:48:06,480 --> 05:48:08,000
ON FRIDAY, THIS YEAR, AND THINK

8940
05:48:08,000 --> 05:48:12,000
ABOUT THE ADULTS IN YOUR LIFE ON

8941
05:48:12,000 --> 05:48:12,680
THE SPECTRUM.

8942
05:48:12,680 --> 05:48:13,120
>>THANK YOU.

8943
05:48:13,120 --> 05:48:15,560
YOUR EVENT IS ALSO IN OUR ROUND

8944
05:48:15,560 --> 05:48:16,400
ROBIN PACKET.

8945
05:48:16,400 --> 05:48:18,520
AND I WILL ALSO JUST THROW IN A

8946
05:48:18,520 --> 05:48:21,920
PLUG AGAIN FOR OUR EVENT ON

8947
05:48:21,920 --> 05:48:23,400
APRIL 14, EVERYONE IS WELCOME.

8948
05:48:23,400 --> 05:48:26,520
I DON'T THINK I PUT IN A SLIDE

8949
05:48:26,520 --> 05:48:27,680
AT THE END FOR THAT, BUT CHECK

8950
05:48:27,680 --> 05:48:30,480
IT OUT ON OUR WEBSITE, ON THE

8951
05:48:30,480 --> 05:48:31,840
CAROUSEL THAT ROTATES ON THE

8952
05:48:31,840 --> 05:48:33,400
REMEMBER SITE IF YOU GO THERE.

8953
05:48:33,400 --> 05:48:36,120
IT'S SURE TO BE A REALLY

8954
05:48:36,120 --> 05:48:37,240
EXCITING EVENT.

8955
05:48:37,240 --> 05:48:41,360
SO IN TERMS OF OUR ACTION ITEMS,

8956
05:48:41,360 --> 05:48:46,880
I DON'T -- OH, MY SLIDES ARE

8957
05:48:46,880 --> 05:48:47,160
HERE.

8958
05:48:47,160 --> 05:48:50,360
I JUST NEED THE CONTROL.

8959
05:48:50,360 --> 05:48:52,120
THERE WE GO.

8960
05:48:52,120 --> 05:48:55,960
SO, NEXT FULL COMMITTEE MEETING

8961
05:48:55,960 --> 05:48:57,680
OF THE IACC IS OCTOBER 2023,

8962
05:48:57,680 --> 05:48:59,320
WE'RE HOPING WE WILL BE HYBRID

8963
05:48:59,320 --> 05:49:01,200
BUT WE ALSO HAVE A POSSIBILITY

8964
05:49:01,200 --> 05:49:02,280
OF BEING VIRTUAL IF WE DON'T

8965
05:49:02,280 --> 05:49:03,600
HAVE THE ROOM AVAILABLE.

8966
05:49:03,600 --> 05:49:06,440
WE'LL KEEP YOU POSTED ON THAT.

8967
05:49:06,440 --> 05:49:08,200
AND CHECK THE IACC WEBSITE FOR

8968
05:49:08,200 --> 05:49:09,400
MEETING INFORMATION AND UPDATE

8969
05:49:09,400 --> 05:49:12,560
IT'S. 

8970
05:49:12,560 --> 05:49:13,920
--  UPDATES.

8971
05:49:13,920 --> 05:49:15,720
I'LL BE E-MAILING AS WELL.

8972
05:49:15,720 --> 05:49:18,280
I GUESS THE OTHER PIECE IN TERMS

8973
05:49:18,280 --> 05:49:22,120
OF ACTION ITEMS GOING OUT WILL

8974
05:49:22,120 --> 05:49:23,640
BE COMMUNICATING ABOUT THE

8975
05:49:23,640 --> 05:49:26,600
SUMMARY OF ADVANCES AND

8976
05:49:26,600 --> 05:49:27,680
CO-OCCURRING CONDITIONS IN THE

8977
05:49:27,680 --> 05:49:29,440
DOCUMENT BETWEEN NOW AND THE

8978
05:49:29,440 --> 05:49:32,080
NEXT MEETING BUT WE DON'T HAVE A

8979
05:49:32,080 --> 05:49:34,040
LOT OF ITEMS SINCE YOU FINISHED

8980
05:49:34,040 --> 05:49:35,360
THE STRATEGIC PLAN SUCCESSFULLY.

8981
05:49:35,360 --> 05:49:39,320
AND WE'LL SHARE WITH YOU ANY

8982
05:49:39,320 --> 05:49:42,040
UPDATES ON PUBLISHED MATERIALS.

8983
05:49:42,040 --> 05:49:43,600
AND SHELLI, DO YOU HAVE ANY

8984
05:49:43,600 --> 05:49:46,760
FINAL WORDS FOR THE GROUP TODAY?

8985
05:49:46,760 --> 05:49:48,520
>>THANKS, SUSAN.

8986
05:49:48,520 --> 05:49:50,600
I'LL JUST SAY AGAIN ECHOING

8987
05:49:50,600 --> 05:49:51,720
EARLIER COMMENTS, THANK YOU ALL

8988
05:49:51,720 --> 05:49:52,920
SO MUCH FOR YOUR PARTICIPATION.

8989
05:49:52,920 --> 05:49:55,360
IT WAS A VERY INFORMATIVE SET OF

8990
05:49:55,360 --> 05:49:56,640
DISCUSSIONS TODAY.

8991
05:49:56,640 --> 05:49:58,720
WE ALL BENEFIT FROM HEARING THE

8992
05:49:58,720 --> 05:50:00,040
PERSPECTIVES AND TRYING TO THINK

8993
05:50:00,040 --> 05:50:01,800
FORWARD ABOUT HOW WE CAN MAKE

8994
05:50:01,800 --> 05:50:02,600
CHANGE.

8995
05:50:02,600 --> 05:50:05,960
SO THANK YOU AGAIN FOR YOUR

8996
05:50:05,960 --> 05:50:06,480
PARTICIPATION.

8997
05:50:06,480 --> 05:50:08,040
THANKS AGAIN TO SUSAN AND HER

8998
05:50:08,040 --> 05:50:10,640
OFFICE AS SHE IS SHOWING ON THE

8999
05:50:10,640 --> 05:50:12,840
LAST SLIDE, IT'S QUITE A FEAT TO

9000
05:50:12,840 --> 05:50:14,560
PULL THESE MEETINGS OFF,

9001
05:50:14,560 --> 05:50:15,280
PARTICULARLY ONLINE.

9002
05:50:15,280 --> 05:50:18,040
I THINK THEY ALWAYS DO A

9003
05:50:18,040 --> 05:50:18,400
FANTASTIC JOB.

9004
05:50:18,400 --> 05:50:19,200
>>THANK YOU.

9005
05:50:19,200 --> 05:50:22,040
YES, THANK YOU TO THE TEAM THAT

9006
05:50:22,040 --> 05:50:23,800
SUPPORTED US TODAY, THE OFFICE

9007
05:50:23,800 --> 05:50:26,120
OF AUTISM RESEARCH COORDINATION,

9008
05:50:26,120 --> 05:50:27,960
AS WELL AS ROSE LI AND

9009
05:50:27,960 --> 05:50:30,480
ASSOCIATES, AND CENTER FOR

9010
05:50:30,480 --> 05:50:32,160
INFORMATION TECHNOLOGY AT NIH

9011
05:50:32,160 --> 05:50:35,200
THAT SUPPORTS NIH VIDEOCAST.

9012
05:50:35,200 --> 05:50:37,800
WE APPRECIATE YOUR SUPPORT AND A

9013
05:50:37,800 --> 05:50:40,000
WONDERFUL WAY TO RECOGNIZE THIS

9014
05:50:40,000 --> 05:50:40,680
SPECIAL MONTH.

9015
05:50:40,680 --> 05:50:42,240
SO WE HOPE YOU ALL HAVE A

9016
05:50:42,240 --> 05:50:43,960
WONDERFUL REST OF YOUR DAY.

9017
05:50:43,960 --> 05:50:46,360
WE LOOK FORWARD TO BEING IN

9018
05:50:46,360 --> 05:50:46,560
TOUCH.

9019
05:50:46,560 --> 05:50:48,240
TAKE CARE.

9020
05:50:48,240 --> 05:50:50,080
THANK YOU.

9021
05:50:50,080 --> 05:50:50,400
BYE-BYE.

9022
05:50:50,400 --> 00:00:00,000
>>THANKS, EVERYONE.