1 00:00:48,777 --> 00:00:54,215 >> WE'RE PLEASED TO WELCOME 2 00:00:54,215 --> 00:00:57,986 MEMBERS OF THE PUBLIC AS WELL AS 3 00:00:57,986 --> 00:01:00,121 THOSE WATCHING. 4 00:01:00,121 --> 00:01:04,993 IT'S MY PLEASURE TO GIVE YOU AN 5 00:01:04,993 --> 00:01:07,929 OUTDATE ON WHAT WE ARE GOING TO 6 00:01:07,929 --> 00:01:12,700 DO AND INTRODUCE NEW MEMBERS OF 7 00:01:12,700 --> 00:01:20,108 THE IACC AND I'LL TURN IT OVER 8 00:01:20,108 --> 00:01:30,418 TO SUSAN DANIELS. 9 00:01:31,219 --> 00:01:36,858 WELCOME SOME MEMBERS WHO ARE NEW 10 00:01:36,858 --> 00:01:38,326 WE'RE PLEASED TO HAVE A 11 00:01:38,326 --> 00:01:40,495 REPRESENTATIVE FROM THE 12 00:01:40,495 --> 00:01:41,529 DEPARTMENT OF JUSTICE JOIN US ON 13 00:01:41,529 --> 00:01:42,197 THE IACC. 14 00:01:42,197 --> 00:01:44,165 WOULD YOU LIKE TO SAY WORDS TO 15 00:01:44,165 --> 00:01:54,609 INTRODUCE YOURSELF, BROOK. 16 00:02:03,985 --> 00:02:08,089 WE DO BRIDGING AND LAW 17 00:02:08,089 --> 00:02:09,591 ENFORCEMENT AND BEHAVIORAL 18 00:02:09,591 --> 00:02:10,658 HEALTH CROSS-COLLABORATION 19 00:02:10,658 --> 00:02:11,059 STUFF. 20 00:02:11,059 --> 00:02:12,227 THANK YOU SO MUCH. 21 00:02:12,227 --> 00:02:15,029 >> THANK YOU, BROOK AND FOR 22 00:02:15,029 --> 00:02:17,765 BEING AN EXCELLENT DEMONSTRATOR 23 00:02:17,765 --> 00:02:21,302 IN USE THE MIC AND SPEAK INTO 24 00:02:21,302 --> 00:02:22,403 THE MICROPHONE NOT ONLY PEOPLE 25 00:02:22,403 --> 00:02:24,138 IN THE ROOM CAN HEAR YOU BUT 26 00:02:24,138 --> 00:02:33,281 MEMBERS AND PUBLIC ONLINE. 27 00:02:33,281 --> 00:02:36,251 I WANT TO INTRODUCE MARIA FRYER 28 00:02:36,251 --> 00:02:42,957 WHO FORMALLY INTRODUCE THE 29 00:02:42,957 --> 00:02:43,524 DEPARTMENT. 30 00:02:43,524 --> 00:02:46,227 AND NEXT PETER KAVULIC. 31 00:02:46,227 --> 00:02:48,329 WE'LL ASK CHRISTY TO INTRODUCE 32 00:02:48,329 --> 00:02:58,640 HERSELF LATER ON. 33 00:03:00,775 --> 00:03:02,176 I'LL ACKNOWLEDGE DR. LARRY 34 00:03:02,176 --> 00:03:02,410 WEXLER. 35 00:03:02,410 --> 00:03:04,412 MOST OF US AROUND THE TABLE KNOW 36 00:03:04,412 --> 00:03:07,348 VERY WELL BECAUSE HE'S THE 37 00:03:07,348 --> 00:03:09,417 LONGEST SERVING MEMBER OF THE 38 00:03:09,417 --> 00:03:09,651 IACC. 39 00:03:09,651 --> 00:03:11,452 HE RETIRED JUST A FEW MONTHS AGO 40 00:03:11,452 --> 00:03:14,689 AFTER THE LAST MEETING AND I 41 00:03:14,689 --> 00:03:16,457 NEED TO ACKNOWLEDGE AT THE LAST 42 00:03:16,457 --> 00:03:22,764 MEETING LARRY HAD A VALUABLE 43 00:03:22,764 --> 00:03:31,472 MEMBER OF THE COMMITTEE. 44 00:03:31,472 --> 00:03:34,409 >> I'M CHRISTY KAVULIC WITHIN 45 00:03:34,409 --> 00:03:37,111 THE DEPARTMENT OF EDUCATION AND 46 00:03:37,111 --> 00:03:38,413 SERVED AS THE ALTERNATE UNDER 47 00:03:38,413 --> 00:03:39,247 DR. WEXLER. 48 00:03:39,247 --> 00:03:41,416 >> NICE TO HAVE YOU JOIN US 49 00:03:41,416 --> 00:03:42,917 TODAY. 50 00:03:42,917 --> 00:03:46,888 ANOTHER RECENT ADDITION TO THE 51 00:03:46,888 --> 00:03:48,990 IACC IS CAMILLE PROCTOR. 52 00:03:48,990 --> 00:03:49,924 SHE DIDN'T HAVE A CHANCE TO 53 00:03:49,924 --> 00:03:54,062 INTRODUCE HERSELF. 54 00:03:54,062 --> 00:03:57,966 >> NOT HERE YET. 55 00:03:57,966 --> 00:04:00,101 >> WE'LL HAVE HER INTRODUCE 56 00:04:00,101 --> 00:04:04,605 HERSELF. 57 00:04:04,605 --> 00:04:10,979 THERE'S ANOTHER NEW MEMBER, 58 00:04:10,979 --> 00:04:13,982 DR. DR. BERTAGNOLLI THE NEW 59 00:04:13,982 --> 00:04:14,782 DIRECTOR OF THE NATIONAL 60 00:04:14,782 --> 00:04:17,151 INSTITUTE OF CANCER. 61 00:04:17,151 --> 00:04:19,153 USUALLY THE DIRECTOR IS 62 00:04:19,153 --> 00:04:20,888 REPRESENTED BY AN ALTERNATE BUT 63 00:04:20,888 --> 00:04:23,091 WANTED TO COME MEET YOU ALL AND 64 00:04:23,091 --> 00:04:28,096 ADDRESS YOU THIS MORNING AND 65 00:04:28,096 --> 00:04:30,631 ADDRESS YOU IN MINUTES. 66 00:04:30,631 --> 00:04:36,004 BEFORE WE HAVE COMMITTEE MEMBER 67 00:04:36,004 --> 00:04:36,337 NEWS. 68 00:04:36,337 --> 00:04:40,575 DR. SIEGEL HAS BEEN APPOINTED TO 69 00:04:40,575 --> 00:04:44,812 THE CHIEF OF CLINICAL ENTERPRISE 70 00:04:44,812 --> 00:04:46,447 AT CHILDREN'S BOSTON HOSPITAL 71 00:04:46,447 --> 00:04:51,319 AND THE OFFICER AT FRANCISCAN 72 00:04:51,319 --> 00:04:53,755 CHILDREN'S AND IS NOT HERE 73 00:04:53,755 --> 00:04:53,988 TODAY. 74 00:04:53,988 --> 00:04:55,857 WE WISH HIM THE BEST IN HIS NEW 75 00:04:55,857 --> 00:04:56,424 ROLE. 76 00:04:56,424 --> 00:04:59,293 BEFORE TURNING IT OVER TO JUNES 77 00:04:59,293 --> 00:04:59,927 FOR THE MORNING BUSINESS I WANT 78 00:04:59,927 --> 00:05:01,262 TO ACKNOWLEDGE WE HAVE AN 79 00:05:01,262 --> 00:05:02,330 EXCITING AGENDA FOR THE REST OF 80 00:05:02,330 --> 00:05:03,064 THE DAY. 81 00:05:03,064 --> 00:05:05,533 WE'RE GOING TO HEAR A 82 00:05:05,533 --> 00:05:07,135 PRESENTATION FROM THE FEDERAL 83 00:05:07,135 --> 00:05:08,703 INTERAGENCY WORK GROUP ON 84 00:05:08,703 --> 00:05:08,936 AUTISM. 85 00:05:08,936 --> 00:05:11,672 THAT IS THE GROUP THAT SUSAN AND 86 00:05:11,672 --> 00:05:14,075 HER CAPACITY AS THE NATIONAL 87 00:05:14,075 --> 00:05:15,676 AUTISM COORDINATOR CONVENES TO 88 00:05:15,676 --> 00:05:17,178 MAKE SURE OUR FEDERAL AGENCIES 89 00:05:17,178 --> 00:05:22,383 FOLLOW-UP ON THE RECOMMENDATIONS 90 00:05:22,383 --> 00:05:29,724 OF THIS ORGANIZATION. 91 00:05:29,724 --> 00:05:31,292 THEY'LL PRESENT ON THE AUTISM 92 00:05:31,292 --> 00:05:33,461 SPACE AND HOW THE GROUP WORKS 93 00:05:33,461 --> 00:05:35,763 TOGETHER ON HOW TO SET FORTH FOR 94 00:05:35,763 --> 00:05:37,465 US AND DISCUSS BUSINESS THIS 95 00:05:37,465 --> 00:05:39,467 AFTERNOON AND HAVE PUBLIC 96 00:05:39,467 --> 00:05:41,436 COMMENTS AND DISCUSS THEM AND 97 00:05:41,436 --> 00:05:43,638 HAVE A PANEL ON JUSTICE AND LAW 98 00:05:43,638 --> 00:05:44,105 ENFORCEMENT ISSUES. 99 00:05:44,105 --> 00:05:50,812 WITH THAT I'LL TURN IT OVER TO 100 00:05:50,812 --> 00:05:52,380 SUSAN WHO WILL MAKE HOUSEKEEPING 101 00:05:52,380 --> 00:05:53,915 ANNOUNCEMENTS BEFORE WE END WITH 102 00:05:53,915 --> 00:05:54,348 THE PROGRAM. 103 00:05:54,348 --> 00:05:56,284 >> GOOD MORNING AND WELCOME. 104 00:05:56,284 --> 00:06:03,558 IT'S GREAT TO SEE MANY OF YOU 105 00:06:03,558 --> 00:06:08,830 HERE AND WELCOME TO THE PUBLIC 106 00:06:08,830 --> 00:06:09,163 WATCHING US. 107 00:06:09,163 --> 00:06:15,837 WE HAVE AN EXCITING AGENDA 108 00:06:15,837 --> 00:06:16,437 PREPARED. 109 00:06:16,437 --> 00:06:19,740 NEXT I'M GOING TO TAKE 110 00:06:19,740 --> 00:06:24,145 ATTENDANCE OFFICIALLY TO KNOW 111 00:06:24,145 --> 00:06:26,080 WHO'S HERE. 112 00:06:26,080 --> 00:06:36,424 I'LL GO THROUGH -- 113 00:06:39,494 --> 00:06:42,563 >> ALICE ATTENDING ON BEHALF OF 114 00:06:42,563 --> 00:06:42,864 DR. BIANCHI. 115 00:06:42,864 --> 00:06:45,733 >> THANK YOU, ALICE. 116 00:06:45,733 --> 00:06:51,639 AMANDA BRIANS FROM THE 117 00:06:51,639 --> 00:06:52,273 ADMINISTRATION [INDISCERNIBLE] 118 00:06:52,273 --> 00:06:59,881 CHILDREN AND FAMILIES. 119 00:06:59,881 --> 00:07:07,155 MITCHELL BURGER FROM SAMHSA AS 120 00:07:07,155 --> 00:07:17,198 ALTERNATE. 121 00:07:17,198 --> 00:07:18,232 >> DIVISION OF PSYCHIATRY AND 122 00:07:18,232 --> 00:07:21,369 I'LL BE IN AND OUT TODAY SO MY 123 00:07:21,369 --> 00:07:22,703 ALTERNATE IS ON THE LINE AS 124 00:07:22,703 --> 00:07:32,813 WELL. 125 00:07:37,818 --> 00:07:43,157 >> HI, GOOD MORNING,AL. 126 00:07:43,157 --> 00:07:43,858 -- ALL. 127 00:07:43,858 --> 00:07:46,861 >> JOHNSON FROM ACL. 128 00:07:46,861 --> 00:07:56,204 OR AMANDA REEKER. 129 00:07:56,204 --> 00:07:57,471 CHRISTY HARDY. 130 00:07:57,471 --> 00:08:00,107 >> I'M HERE FOR DR. KOROSHETZ. 131 00:08:00,107 --> 00:08:01,409 >> THANK YOU. 132 00:08:01,409 --> 00:08:07,882 >> IF YOU'RE SPEAKING IN THE MIC 133 00:08:07,882 --> 00:08:18,125 KEEP IT CLOSE. 134 00:08:22,230 --> 00:08:26,901 >> ALLISON FROM SSA AND WE HAVE 135 00:08:26,901 --> 00:08:30,671 A NEW ALTERNATE HEATHER GOMEZ 136 00:08:30,671 --> 00:08:34,308 BENDANA WHO WILL BE MY NEW 137 00:08:34,308 --> 00:08:36,544 ALTERNATE AND SHE IS LISTENING 138 00:08:36,544 --> 00:08:38,746 IN BUT I'LL BE HEAR THE WHOLE 139 00:08:38,746 --> 00:08:39,614 MEETING BUT WANT TO ACKNOWLEDGE 140 00:08:39,614 --> 00:08:49,957 HER AND WELCOME HER. 141 00:08:56,030 --> 00:09:06,474 >> THE VA IS ALSO REPRESENTED. 142 00:09:27,762 --> 00:09:29,997 >> GOOD MORNING. 143 00:09:29,997 --> 00:09:32,133 >> BOBBY SITTING IN FOR BARBARA 144 00:09:32,133 --> 00:09:42,276 ROLLAND. 145 00:09:57,725 --> 00:09:58,893 >> CAP LIN. 146 00:09:58,893 --> 00:10:00,728 >> PRESENT. 147 00:10:00,728 --> 00:10:01,996 >> NICOLE WILLIAMS. 148 00:10:01,996 --> 00:10:12,540 >> HI, GOOD MORNING, EVERYBODY. 149 00:10:13,874 --> 00:10:17,211 >> GOOD MORNING, SCOTT FROM THE 150 00:10:17,211 --> 00:10:20,314 OFFICE OF DISABILITY AND POLICY. 151 00:10:20,314 --> 00:10:28,055 THANKS. 152 00:10:28,055 --> 00:10:38,499 >> RICK WOYCHIK, I MADE A 153 00:10:40,167 --> 00:10:41,602 COMMITMENT TO MAKE REMARKS AT A 154 00:10:41,602 --> 00:10:43,270 COUNCIL AND I'LL BE BRIEFED ON 155 00:10:43,270 --> 00:10:44,505 THE MEETING. 156 00:10:44,505 --> 00:10:45,172 >> THANK YOU SO MUCH. 157 00:10:45,172 --> 00:10:55,516 NOW PUBLIC MEMBERS. 158 00:11:09,530 --> 00:11:12,633 >> I HAD A BAD DISABILITY DAY 159 00:11:12,633 --> 00:11:12,833 TODAY. 160 00:11:12,833 --> 00:11:23,077 >> DICKERSON. 161 00:11:25,613 --> 00:11:35,756 >> I'M HERE. 162 00:11:40,361 --> 00:11:44,098 >> FREDDY JOHNSON. 163 00:11:44,098 --> 00:11:51,605 >> I'M HERE. 164 00:11:51,605 --> 00:12:02,049 >> GOOD MORNING, I'M HERE. 165 00:12:11,125 --> 00:12:12,359 >> PRESENT, GOOD MORNING, 166 00:12:12,359 --> 00:12:18,032 EVERYONE. 167 00:12:18,032 --> 00:12:19,600 >> I APOLOGIZE. 168 00:12:19,600 --> 00:12:22,536 MY CAMERA'S NOT WORKING. 169 00:12:22,536 --> 00:12:24,939 I AM HERE. 170 00:12:24,939 --> 00:12:27,007 >> NO PROBLEM. 171 00:12:27,007 --> 00:12:32,112 THANK YOU, IVANOVA. 172 00:12:32,112 --> 00:12:42,223 >> HI. 173 00:12:43,157 --> 00:12:45,860 >> GOOD MORNING, EVERYONE. 174 00:12:45,860 --> 00:12:49,530 >> PRESENT. 175 00:12:49,530 --> 00:12:53,133 >> AND LAST. 176 00:12:53,133 --> 00:12:54,268 >> GOOD MORNING. 177 00:12:54,268 --> 00:12:56,303 >> IS THERE ANYONE I DOESN'T 178 00:12:56,303 --> 00:12:56,770 READ OFF. 179 00:12:56,770 --> 00:12:59,473 >> I'M FROM THE DEPARTMENT OF 180 00:12:59,473 --> 00:13:02,376 HOUSING AND URBAN DEVELOPMENT. 181 00:13:02,376 --> 00:13:04,979 I THINK I WAS CALLED EARLIER BUT 182 00:13:04,979 --> 00:13:15,489 HAVING TROUBLE WITH MY AUDIO. 183 00:13:22,596 --> 00:13:28,269 >> IESHA DICKERSON FROM THE 184 00:13:28,269 --> 00:13:29,436 BLOOMBERG SCHOOL OF PUBLIC 185 00:13:29,436 --> 00:13:29,670 HEALTH. 186 00:13:29,670 --> 00:13:34,575 >> I'M SORRY I DIDN'T THE TIME 187 00:13:34,575 --> 00:13:40,548 TO READ EVERYONE'S TITLES. 188 00:13:40,548 --> 00:13:42,483 EVERYBODY'S ONLINE THOUGH. 189 00:13:42,483 --> 00:13:45,286 YOU CAN SEE ALL THE INFORMATION 190 00:13:45,286 --> 00:13:45,553 THERE. 191 00:13:45,553 --> 00:13:47,421 IT'S A FANTASTIC GROUP OF PEOPLE 192 00:13:47,421 --> 00:13:53,594 THAT HAVE DEDICATED THEIR TIME. 193 00:13:53,594 --> 00:13:56,263 NEXT I WOULD LIKE TO TURN OUR 194 00:13:56,263 --> 00:14:06,674 ATTENTION TO OCTOBER 11. 195 00:14:10,978 --> 00:14:16,116 DOES ANYONE HAVE COMMENTS ABOUT 196 00:14:16,116 --> 00:14:17,017 THE DRAFT? 197 00:14:17,017 --> 00:14:19,687 >> ON THE ROUND ROBIN NOTES D.C. 198 00:14:19,687 --> 00:14:21,021 FAMILY VOICES AND IT WAS 199 00:14:21,021 --> 00:14:21,322 NATIONAL. 200 00:14:21,322 --> 00:14:22,556 I WANT TO MAKE SURE THAT IS 201 00:14:22,556 --> 00:14:26,260 CORRECTED ON THE NOTES. 202 00:14:26,260 --> 00:14:29,630 >> THANK YOU SO MUCH. 203 00:14:29,630 --> 00:14:33,534 SOMEBODY FROM OUR TEAM HAS IT 204 00:14:33,534 --> 00:14:33,834 CORRECTED. 205 00:14:33,834 --> 00:14:34,702 ANYTHING ELSE? 206 00:14:34,702 --> 00:14:37,304 >> WELL, IF THERE ARE NO 207 00:14:37,304 --> 00:14:39,073 COMMENTS ON THE MINUTES, CAN I 208 00:14:39,073 --> 00:14:40,808 GET A MOTION ON THE FLOOR FOR 209 00:14:40,808 --> 00:14:41,308 SEVEN MINUTES. 210 00:14:41,308 --> 00:14:51,819 >> I CAN PUT A MOTION FORWARD. 211 00:14:52,219 --> 00:14:54,121 >> ACCEPT THE MOTION? 212 00:14:54,121 --> 00:14:57,024 ARE THERE ANY OPPOSED TO 213 00:14:57,024 --> 00:14:59,159 ACCEPTING THE MINUTES OR 214 00:14:59,159 --> 00:15:02,630 CORRECTION? 215 00:15:02,630 --> 00:15:07,334 ANYONE ABSTAINING? 216 00:15:07,334 --> 00:15:09,637 WITH THAT IT LOOKS LIKE WE'LL BE 217 00:15:09,637 --> 00:15:12,106 ACCEPTING THE MINUTES AND IF 218 00:15:12,106 --> 00:15:13,374 THERE'S MINOR CORRECTIONS CAN WE 219 00:15:13,374 --> 00:15:15,075 CONTACT THE OFFICE AND WE'LL GET 220 00:15:15,075 --> 00:15:15,809 IT TAKEN CARE OF. 221 00:15:15,809 --> 00:15:19,279 THANK YOU SO MUCH. 222 00:15:19,279 --> 00:15:25,419 WITH THAT WE HAVE HOUSEKEEPING 223 00:15:25,419 --> 00:15:35,663 ANNOUNCEMENT S 224 00:15:56,316 --> 00:15:57,017 IN ORDER TO MAKE SURE THAT 225 00:15:57,017 --> 00:15:57,651 EVERYONE HAS THE OPPORTUNITY TO 226 00:15:57,651 --> 00:15:58,152 SPEAK DURING COMMITTEE 227 00:15:58,152 --> 00:15:58,886 DISCUSSIONS, IT WILL BE 228 00:15:58,886 --> 00:15:59,520 IMPORTANT FOR ALL OF US TO RAISE 229 00:15:59,520 --> 00:16:00,921 OUR HANDS EITHER PHYSICALLY OR 230 00:16:00,921 --> 00:16:01,555 IN ZOOM, USING THE RAISE HANDS 231 00:16:01,555 --> 00:16:02,189 FEATURE. WE WILL DO OUR BEST TO 232 00:16:02,189 --> 00:16:02,790 MAKE SURE THAT EVERYONE HAS A 233 00:16:02,790 --> 00:16:03,390 TURN TO SPEAK AS TIME ALLOWS. 234 00:16:03,390 --> 00:16:04,024 PLEASE KEEP YOUR COMMENTS BRIEF 235 00:16:04,024 --> 00:16:04,892 SO THAT WE CAN GIVE AS MANY 236 00:16:04,892 --> 00:16:05,426 PEOPLE A TURN TO SPEAK AS 237 00:16:05,426 --> 00:16:06,660 POSSIBLE. 238 00:16:06,660 --> 00:16:07,227 TO THOSE HERE IN THE ROOM, 239 00:16:07,227 --> 00:16:08,128 PLEASE TURN ON YOUR TABLETOP 240 00:16:08,128 --> 00:16:09,596 MICROPHONE WHEN YOU ARE SPEAKING 241 00:16:09,596 --> 00:16:10,264 AND TURN IT OFF WHEN YOU ARE 242 00:16:10,264 --> 00:16:10,898 DONE. SINCE WE HAVE PARTICIPANTS 243 00:16:10,898 --> 00:16:11,532 AND AUDIENCE MEMBERS JOINING US 244 00:16:11,532 --> 00:16:12,132 VIRTUALLY, WE WANT TO BE SURE 245 00:16:12,132 --> 00:16:12,766 THAT EVERYONE CAN HEAR YOU. IF 246 00:16:12,766 --> 00:16:14,001 YOU ARE HERE IN PERSON AND ALSO 247 00:16:14,001 --> 00:16:14,635 SIGNED INTO ZOOM, PLEASE BE SURE 248 00:16:14,635 --> 00:16:15,269 TO MUTE THE AUDIO ON YOUR DEVICE 249 00:16:15,269 --> 00:16:15,903 TO PREVENT ECHOES OR FEEDBACK. 250 00:16:15,903 --> 00:16:16,603 FOR THOSE OF YOU JOINING US 251 00:16:16,603 --> 00:16:17,438 VIRTUALLY BY ZOOM, PLEASE KEEP 252 00:16:17,438 --> 00:16:18,138 YOURSELF MUTED AND YOUR CAMERA 253 00:16:18,138 --> 00:16:18,739 OFF DURING PRESENTATIONS AND 254 00:16:18,739 --> 00:16:19,273 BREAKS. DURING COMMITTEE 255 00:16:19,273 --> 00:16:19,907 DISCUSSIONS, YOU ARE WELCOME TO 256 00:16:19,907 --> 00:16:20,541 TURN ON YOUR CAMERAS AND UNMUTE 257 00:16:20,541 --> 00:16:24,411 YOURSELF TO SPEAK. 258 00:16:24,411 --> 00:16:27,981 >> WE'RE HEARING THE PEOPLE ON 259 00:16:27,981 --> 00:16:29,883 THE PHONE ARE GETTING A LOT OF 260 00:16:29,883 --> 00:16:31,051 REBOUNDING BECAUSE THEY'RE 261 00:16:31,051 --> 00:16:32,186 GETTING ERRATIC FEEDBACK. 262 00:16:32,186 --> 00:16:34,088 IT IS NOW BUT IT WASN'T BEFORE. 263 00:16:34,088 --> 00:16:38,258 YOU HAVE TO REALLY LEAN IN. 264 00:16:38,258 --> 00:16:39,359 >> ALL RIGHT. 265 00:16:39,359 --> 00:16:41,395 I THINK IT'S ALL I HAVE AND I'M 266 00:16:41,395 --> 00:16:48,102 GOING TO TURN IT BACK OVER TO 267 00:16:48,102 --> 00:16:52,106 JOSH GORDON. 268 00:16:52,106 --> 00:16:55,576 >> THANK YOU AGAIN. 269 00:16:55,576 --> 00:16:57,411 WELCOME DR. MONICA BERTAGNOLLI 270 00:16:57,411 --> 00:16:59,413 TO THE XT TODAY. 271 00:16:59,413 --> 00:17:03,884 AS THE 17th DIRECTOR OF THE 272 00:17:03,884 --> 00:17:10,557 NATIONAL INSTITUTE SHE ASSUMES 273 00:17:10,557 --> 00:17:14,962 THE SEAT MAYBE LATER THOUGH SHE 274 00:17:14,962 --> 00:17:17,698 HAD TO BE ELSEWHERE SHE INSISTED 275 00:17:17,698 --> 00:17:20,100 IN BEING HERE TODAY AND HEAR THE 276 00:17:20,100 --> 00:17:22,369 BUSINESS WE DO AND SPEAK ABOUT 277 00:17:22,369 --> 00:17:23,070 THE ROLE HERE. 278 00:17:23,070 --> 00:17:27,574 DR. BERTAGNOLLI HAS BEEN AN 279 00:17:27,574 --> 00:17:31,178 AMAZING SURGICAL ONCOLOGIST 280 00:17:31,178 --> 00:17:32,746 MAKING FANTASTIC CONTRIBUTIONS 281 00:17:32,746 --> 00:17:36,450 TO REDUCE THE BURDEN OF CANCERS. 282 00:17:36,450 --> 00:17:38,051 SHE'S BEEN AN IMMENSE 283 00:17:38,051 --> 00:17:39,887 CONTRIBUTOR TO THE AREA OF 284 00:17:39,887 --> 00:17:40,521 CLINICAL TRIALS GENERALLY AND 285 00:17:40,521 --> 00:17:43,290 FOR A YEAR OR MORE SERVED AS THE 286 00:17:43,290 --> 00:17:47,094 DIRECTOR OF THE NATIONAL CANCER 287 00:17:47,094 --> 00:17:47,795 INSTITUTE FOR PRESIDENT BIDEN 288 00:17:47,795 --> 00:17:49,997 ASKED HER TO TAKE ON THE ROLE OF 289 00:17:49,997 --> 00:17:52,533 THE DIRECTOR OF THE NATIONAL 290 00:17:52,533 --> 00:17:54,468 INSTITUTES OF HEALTH AND I'M NOT 291 00:17:54,468 --> 00:17:56,703 GOING TO TAKE ANY MORE OF HER 292 00:17:56,703 --> 00:17:56,904 TIME. 293 00:17:56,904 --> 00:17:58,806 I'LL LET HER INTRODUCE HERSELF. 294 00:17:58,806 --> 00:18:03,443 >> THANK YOU SO MUCH, 295 00:18:03,443 --> 00:18:05,979 DR. GORDON. 296 00:18:05,979 --> 00:18:07,948 >> GOOD MORNING, I'M THRILLED TO 297 00:18:07,948 --> 00:18:09,383 BE HERE AND I HAVE THE 298 00:18:09,383 --> 00:18:13,020 TREMENDOUS HONOR OF BEING THE 299 00:18:13,020 --> 00:18:14,421 17th DIRECTOR OF THE NATIONAL 300 00:18:14,421 --> 00:18:16,423 INSTITUTES OF HEALTH AND HAVE 301 00:18:16,423 --> 00:18:18,158 ANOTHER TREMENDOUS HONOR IN THAT 302 00:18:18,158 --> 00:18:26,133 I'M THE VERY PROUD MOTHER OF AN 303 00:18:26,133 --> 00:18:28,435 AUTISTIC SON AND HIS NAME IS BEN 304 00:18:28,435 --> 00:18:30,037 AND 27 YEARS OLD AND LIVES WITH 305 00:18:30,037 --> 00:18:32,739 HIS FATHER AND ME AND IS A VERY 306 00:18:32,739 --> 00:18:36,143 HAPPY GUY AND VERY MISCHIEVOUS 307 00:18:36,143 --> 00:18:39,146 CHARACTER AND I AM SO LUCKY TO 308 00:18:39,146 --> 00:18:41,348 BE BEN'S MOM. 309 00:18:41,348 --> 00:18:43,851 AS YOU ALL KNOW EVERY PERSON 310 00:18:43,851 --> 00:18:46,220 WITH AUTISM IS UNIQUE AND EVERY 311 00:18:46,220 --> 00:18:47,287 FAMILY'S EXPERIENCE IS UNIQUE. 312 00:18:47,287 --> 00:18:51,291 OUR STORY HAS BEEN ONE OF GREAT 313 00:18:51,291 --> 00:18:51,758 CHALLENGE. 314 00:18:51,758 --> 00:18:54,795 BEN HAS SOME SIGNIFICANT MEDICAL 315 00:18:54,795 --> 00:18:58,031 PROBLEMS BUT ALSO GREAT JOY. 316 00:18:58,031 --> 00:19:03,136 WE HAVE BEEN SO FORTUNATE WITH 317 00:19:03,136 --> 00:19:04,438 OUR EXPERIENCE AND AS NIH 318 00:19:04,438 --> 00:19:06,340 DIRECTOR I WANT TO STRIVE TO 319 00:19:06,340 --> 00:19:11,845 HAVE THAT EXPERIENCE BE TRUE. 320 00:19:11,845 --> 00:19:15,349 THERE WERE EFFORTS TO IDENTIFY 321 00:19:15,349 --> 00:19:17,417 PRIORITIES FOR AUTISM RESEARCH 322 00:19:17,417 --> 00:19:17,784 AND SERVICES. 323 00:19:17,784 --> 00:19:20,120 THE NATIONAL INSTITUTES OF 324 00:19:20,120 --> 00:19:24,157 MENTAL HEALTH LEADS AND MANAGES 325 00:19:24,157 --> 00:19:25,225 THIS INTERAGENCY AUTISM 326 00:19:25,225 --> 00:19:25,792 COORDINATING COMMITTEE AND 327 00:19:25,792 --> 00:19:30,397 SUPPORTS THE ACTIVITIES OF OUR 328 00:19:30,397 --> 00:19:32,766 NATIONAL AUTISM COORDINATOR. 329 00:19:32,766 --> 00:19:35,636 I WANT TO THANK JOSHUA GORDAN 330 00:19:35,636 --> 00:19:37,738 AND DR. SUSAN DANIELS FOR 331 00:19:37,738 --> 00:19:40,107 SERVING AS THE EXECUTIVE 332 00:19:40,107 --> 00:19:44,111 SECRETARY AND HHS NATIONAL 333 00:19:44,111 --> 00:19:44,411 COORDINATOR. 334 00:19:44,411 --> 00:19:47,180 DIRECTOR OF THE NIH I'M ALSO 335 00:19:47,180 --> 00:19:49,016 PLEASED TO BE APPOINTED AS AN 336 00:19:49,016 --> 00:19:49,650 OFFICIAL MEMBER OF THIS 337 00:19:49,650 --> 00:19:50,083 IMPORTANT COMMITTEE. 338 00:19:50,083 --> 00:19:54,554 I MAY NOT BE ABLE TO TAKED EVERY 339 00:19:54,554 --> 00:19:56,089 MEETING BUT I'LL ALWAYS HAVE 340 00:19:56,089 --> 00:19:57,157 SOMEONE HERE TO REPRESENT THE 341 00:19:57,157 --> 00:19:58,825 OFFICE OF THE DIRECTOR AND KEEP 342 00:19:58,825 --> 00:19:59,293 ME INFORMED ABOUT THE 343 00:19:59,293 --> 00:20:02,029 COMMITTEE'S WORK. 344 00:20:02,029 --> 00:20:05,499 NIH IS THE LARGEST FUNDER OF 345 00:20:05,499 --> 00:20:07,434 AUTISM RESEARCH IN THE UNITED 346 00:20:07,434 --> 00:20:07,868 STATES. 347 00:20:07,868 --> 00:20:09,603 WE ARE PROUD OF THE IMPORTANT 348 00:20:09,603 --> 00:20:10,570 VANCE HAVE RESULT FROM OUR 349 00:20:10,570 --> 00:20:18,345 INVESTMENTS SO FAR. 350 00:20:18,345 --> 00:20:20,781 AND MAYBE IMPROVE AUTISM 351 00:20:20,781 --> 00:20:21,048 SCREENING. 352 00:20:21,048 --> 00:20:24,117 THE NIH STUDIES HAVE HELPED 353 00:20:24,117 --> 00:20:26,520 TRANSLATE FINDINGS ABOUT EARLY 354 00:20:26,520 --> 00:20:28,622 SIGNS OF AUTISM INTO PRACTICAL 355 00:20:28,622 --> 00:20:32,092 SCREENING TOOLS THAT CAN BE 356 00:20:32,092 --> 00:20:33,060 IMPLEMENTED WIDELY. 357 00:20:33,060 --> 00:20:34,161 FOR EXAMPLE, WE ARE SUPPORTING 358 00:20:34,161 --> 00:20:36,396 THE DEVELOPMENT OF TOOLS THAT 359 00:20:36,396 --> 00:20:40,567 CAN SCREEN FOR AUTISM IN 360 00:20:40,567 --> 00:20:44,137 TODDLERS BY TELLE APPOINTMENTS 361 00:20:44,137 --> 00:20:46,173 AND EVEN TABLET-BASED SCREENING 362 00:20:46,173 --> 00:20:46,573 APP. 363 00:20:46,573 --> 00:20:48,108 THE PARENTS WHO HAD TO GO 364 00:20:48,108 --> 00:20:52,579 THROUGH THE CHALLENGES OF 365 00:20:52,579 --> 00:20:55,415 SCREENING 25 YEARS, 26 YEARS 366 00:20:55,415 --> 00:20:58,552 AGO, I REALLY CAN SAY THIS IS A 367 00:20:58,552 --> 00:21:01,021 TREMENDOUS ADVANCE. 368 00:21:01,021 --> 00:21:03,323 NIH SUPPORTED RESEARCH FOUND 369 00:21:03,323 --> 00:21:05,993 MULTI-STAGE SCREENING AND EARLY 370 00:21:05,993 --> 00:21:08,462 INTERVENTION PROGRAMS APPEARS TO 371 00:21:08,462 --> 00:21:11,331 INCREASE AUTISM SPECTRUM 372 00:21:11,331 --> 00:21:12,132 DIAGNOSIS BY AS MUCH 60% 373 00:21:12,132 --> 00:21:14,034 COMPARED TO STANDARD CARE WITH 374 00:21:14,034 --> 00:21:15,635 THE MOST SIGNIFICANT IMPROVEMENT 375 00:21:15,635 --> 00:21:19,606 IN DETECTION IN SPANISH-SPEAKING 376 00:21:19,606 --> 00:21:19,873 FAMILY. 377 00:21:19,873 --> 00:21:23,744 WE ARE HOPEFUL SUCH SCREENING 378 00:21:23,744 --> 00:21:24,911 WILL INCLUDE EARLY DETECTION AND 379 00:21:24,911 --> 00:21:29,016 HEALTH DISPARITIES WHICH WE ALSO 380 00:21:29,016 --> 00:21:32,119 KNOW ARE OF CRITICAL IMPORTANCE 381 00:21:32,119 --> 00:21:32,986 TO THIS COMMUNITY. 382 00:21:32,986 --> 00:21:35,122 OUR RESEARCH HAS ALSO HELPED 383 00:21:35,122 --> 00:21:37,457 WHAT WE KNOW ABOUT THE 384 00:21:37,457 --> 00:21:38,358 BIOLOGICAL MECHANISMS THAT UNDER 385 00:21:38,358 --> 00:21:40,694 LIE AUTISM. 386 00:21:40,694 --> 00:21:44,097 WE SUPPORT RESEARCH TO EXAMINE 387 00:21:44,097 --> 00:21:46,333 ACROSS GENES, CELLS, BRAIN 388 00:21:46,333 --> 00:21:48,268 CIRCUITRY AND BEHAVIOR. 389 00:21:48,268 --> 00:21:50,370 WE SUPPORT LONGITUDINAL STUDIES 390 00:21:50,370 --> 00:21:52,639 OF BRAIN DEVELOPMENT IN CHILDREN 391 00:21:52,639 --> 00:21:54,875 WITH AUTISM IN EFFORTS TO 392 00:21:54,875 --> 00:21:57,944 DEVELOP RELIABLE AND OBJECTIVE 393 00:21:57,944 --> 00:21:59,913 BIO MARKERS FOR FIX AND MEASURES 394 00:21:59,913 --> 00:22:00,414 OF SOCIAL FUNCTION AND 395 00:22:00,414 --> 00:22:06,386 COMMUNICATION. 396 00:22:06,386 --> 00:22:07,988 WHAT'S REALLY IMPORTANT IS 397 00:22:07,988 --> 00:22:09,556 HAVING RELIABLE MEASURES ARE 398 00:22:09,556 --> 00:22:12,826 CRITICAL FOR TESTING NEW 399 00:22:12,826 --> 00:22:14,227 INTERVENTIONS TO IMPROVE THE 400 00:22:14,227 --> 00:22:18,432 LIVES OF AUTISTIC INDIVIDUALS. 401 00:22:18,432 --> 00:22:20,400 NIH IS PROUD TO SUPPORT GROUP 402 00:22:20,400 --> 00:22:21,968 TRAINING AND SERVICES FOR 403 00:22:21,968 --> 00:22:22,669 AUTISTIC ADULTS AND YOUTH 404 00:22:22,669 --> 00:22:28,175 TRANSITIONING TO ADULTS. 405 00:22:28,175 --> 00:22:33,980 IN SHORT, THERE'S SO MUCH TO DO 406 00:22:33,980 --> 00:22:36,917 ON SO MANY FRONTS. 407 00:22:36,917 --> 00:22:40,087 THE COMMUNITY AND EVEN 408 00:22:40,087 --> 00:22:50,564 INDIVIDUAL FAMILY AND HOMES. 409 00:23:05,345 --> 00:23:09,316 AND WE'RE COMMITTED TO REPORTING 410 00:23:09,316 --> 00:23:12,018 RESEARCH TO HELP THE 411 00:23:12,018 --> 00:23:16,123 UNDERSTANDING OF AUTISM ACROSS 412 00:23:16,123 --> 00:23:19,059 THE ENTIRE LIFE SPAN. 413 00:23:19,059 --> 00:23:21,795 CONTINUE TO SEEK INPUT FROM THE 414 00:23:21,795 --> 00:23:22,863 COMMUNITY AND SELF-ADVOCATES AND 415 00:23:22,863 --> 00:23:24,431 WE'LL CONTINUE TO WORK WITH ALL 416 00:23:24,431 --> 00:23:28,635 OTHER FEDERAL AGENCIES TO HELP 417 00:23:28,635 --> 00:23:30,003 IMPROVE HEALTH AND WELL BEING 418 00:23:30,003 --> 00:23:32,105 WITH INDIVIDUALS AND THEIR 419 00:23:32,105 --> 00:23:35,175 FAMILIES. 420 00:23:35,175 --> 00:23:38,311 NIH IS COMMITTED TO A 421 00:23:38,311 --> 00:23:40,113 RELATIONSHIP THAT THOSE BE 422 00:23:40,113 --> 00:23:49,723 SERVED AND DEFINED BY NOTHING 423 00:23:49,723 --> 00:23:50,657 WITH US WITHOUT US. 424 00:23:50,657 --> 00:23:52,092 WE DON'T EXPECT MY SON WILL BE 425 00:23:52,092 --> 00:23:54,895 ABLE TO LIVE INDEPENDENTLY BUT 426 00:23:54,895 --> 00:23:56,997 HOPEFUL HE WILL LIVE HIS BEST 427 00:23:56,997 --> 00:23:57,597 LIFE. 428 00:23:57,597 --> 00:23:58,665 THE LIFE THAT BRINGS HIM PURPOSE 429 00:23:58,665 --> 00:24:02,769 AND SATISFACTION. 430 00:24:02,769 --> 00:24:04,171 PEOPLE WITH AUTISM SHOULD BE 431 00:24:04,171 --> 00:24:06,740 ABLE TO CHOOSE THEIR OWN LIFE 432 00:24:06,740 --> 00:24:10,177 AND TO HAVE WHAT IS NEEDED TO 433 00:24:10,177 --> 00:24:11,044 ACHIEVE IT. 434 00:24:11,044 --> 00:24:13,446 AT NIH WE WILL DO OUR BEST TO 435 00:24:13,446 --> 00:24:19,019 LISTEN TO THIS COMMUNITY AND 436 00:24:19,019 --> 00:24:22,656 PARTNER WITH COMMUNITY BECAUSE 437 00:24:22,656 --> 00:24:25,091 IT'S THE ONLY WAY WE'LL BE ABLE 438 00:24:25,091 --> 00:24:25,992 TO DELIVER THESE EFFORTS. 439 00:24:25,992 --> 00:24:26,693 THANK YOU SO MUCH. 440 00:24:26,693 --> 00:24:28,195 I'M HONORED TO BE A MEMBER OF 441 00:24:28,195 --> 00:24:31,198 THE COMMUNITY OF LOVE AND 442 00:24:31,198 --> 00:24:32,032 SUPPORT OF AUTISTIC PEOPLE 443 00:24:32,032 --> 00:24:35,202 EVERYWHERE AND A LOOK FORWARD TO 444 00:24:35,202 --> 00:24:36,102 WORKING WITH YOU TO MAKE THIS 445 00:24:36,102 --> 00:24:36,336 HAPPEN. 446 00:24:36,336 --> 00:24:46,513 THANK YOU. 447 00:24:50,283 --> 00:24:56,089 >> SUSAN DANIELS WILL GIVE US 448 00:24:56,089 --> 00:25:01,795 THE UPDATES. 449 00:25:01,795 --> 00:25:04,397 >> THANK YOU SO MUCH FOR BEING 450 00:25:04,397 --> 00:25:04,598 HERE. 451 00:25:04,598 --> 00:25:06,032 I'M GOING GIVE THE AUTISM 452 00:25:06,032 --> 00:25:07,701 COORDINATOR UPDATE. 453 00:25:07,701 --> 00:25:08,935 IT'S GOING TO BE THE SHORTEST WE 454 00:25:08,935 --> 00:25:10,670 HAVE SINCE THE NEW COMMITTEE 455 00:25:10,670 --> 00:25:12,105 STARTED BECAUSE WE HAVE A 456 00:25:12,105 --> 00:25:18,411 SPECIAL PRESENTATION GROUP 457 00:25:18,411 --> 00:25:23,483 TODAY. 458 00:25:23,483 --> 00:25:25,218 THE RECENTLY PROGRESS ON 459 00:25:25,218 --> 00:25:26,019 SUPPORTIVE SERVICES FOR 460 00:25:26,019 --> 00:25:27,320 INDIVIDUALS WITH AUTISM AND IT 461 00:25:27,320 --> 00:25:28,855 WAS SENT TO CONGRESS EARLIER BUT 462 00:25:28,855 --> 00:25:31,124 TAKES US A WHILE TO GET THE 463 00:25:31,124 --> 00:25:32,092 VERSION UP ONLINE. 464 00:25:32,092 --> 00:25:42,435 NOW IT'S AVAILABLE. 465 00:25:45,338 --> 00:25:53,046 THE AWARD COVERS SERVICE AND 466 00:25:53,046 --> 00:25:54,447 PROVIDES INFORMATION ABOUT MANY 467 00:25:54,447 --> 00:25:55,682 DIFFERENT MODALITIES OF SERVICES 468 00:25:55,682 --> 00:25:58,318 THAT CAN BE PROVIDED AND ALSO 469 00:25:58,318 --> 00:26:00,687 COVERAGE POLICIES WHICH WAS PART 470 00:26:00,687 --> 00:26:05,992 OF THE REQUEST AND IT HIGHLIGHTS 471 00:26:05,992 --> 00:26:14,401 NEEDS AND OPPORTUNITIES 472 00:26:14,401 --> 00:26:15,935 >> THIS IS SUPPORT MY OFFICE AND 473 00:26:15,935 --> 00:26:17,037 FEDERAL AGENCIES AND 474 00:26:17,037 --> 00:26:18,138 DEPARTMENTS. 475 00:26:18,138 --> 00:26:23,410 SO WE REALLY APPRECIATE 476 00:26:23,410 --> 00:26:25,312 EVERYONE'S COOPERATION ON THIS 477 00:26:25,312 --> 00:26:28,114 REPORT AND AVAILABLE ON THE 478 00:26:28,114 --> 00:26:37,223 WEBSITE. 479 00:26:37,223 --> 00:26:39,659 THIS SLIDE SHOWS THE LIST OF 480 00:26:39,659 --> 00:26:44,097 SOME OF THE DIFFERENT TYPES OF 481 00:26:44,097 --> 00:26:44,898 SERVICES THAT ARE AVAILABLE THAT 482 00:26:44,898 --> 00:26:46,700 ARE COVERED IN THE REPORT. 483 00:26:46,700 --> 00:26:49,469 YOU CAN LOOK THROUGH THAT AND WE 484 00:26:49,469 --> 00:26:55,108 DID TRY TO BE AS COMPREHENSIVE 485 00:26:55,108 --> 00:27:03,249 AS WE COULD. 486 00:27:03,249 --> 00:27:04,684 SOME OF THE RECOMMENDATIONS WERE 487 00:27:04,684 --> 00:27:06,286 WAYS TO STRENGTHEN THE SERVICE 488 00:27:06,286 --> 00:27:08,722 SYSTEM WERE TO INCREASE ON 489 00:27:08,722 --> 00:27:10,690 FAMILY NAVIGATION AND SERVICES 490 00:27:10,690 --> 00:27:14,828 NAVIGATION AND AS A SYSTEM 491 00:27:14,828 --> 00:27:18,465 SOMETIMES CAN BE ACROSS MANY 492 00:27:18,465 --> 00:27:20,100 AREAS AND DIFFICULT TO GAUGE SO 493 00:27:20,100 --> 00:27:20,567 NAVIGATION IS A GREAT 494 00:27:20,567 --> 00:27:30,777 OPPORTUNITY. 495 00:27:34,547 --> 00:27:35,915 DIAGNOSTIC SERVICES AND 496 00:27:35,915 --> 00:27:38,118 SHORTENING WAIT LIST AND THE 497 00:27:38,118 --> 00:27:39,519 OPPORTUNITIES BY TELEHEALTH. 498 00:27:39,519 --> 00:27:41,621 WE ENCOURAGE YOU TO LOOK AT THE 499 00:27:41,621 --> 00:27:42,122 REPORT. 500 00:27:42,122 --> 00:27:45,458 >> I WANT TO MAKE AN EDITORIAL 501 00:27:45,458 --> 00:27:50,163 COMMENT HERE, OFFICIALLY THIS 502 00:27:50,163 --> 00:27:52,098 BODY IS ADVISORY TO THE 503 00:27:52,098 --> 00:27:54,167 SECRETARY AND OFFICIALLY THE 504 00:27:54,167 --> 00:27:55,668 NATIONAL COORDINATOR TRIES TO 505 00:27:55,668 --> 00:27:57,570 TAKE WHAT THIS BODY SUGGESTS AND 506 00:27:57,570 --> 00:28:00,573 GET ALL THE FEDERAL AGENCIES TO 507 00:28:00,573 --> 00:28:03,777 INCORPORATE THAT INTO THEIR 508 00:28:03,777 --> 00:28:06,079 POLICY FOR THE PURPOSES LATER. 509 00:28:06,079 --> 00:28:08,715 THIS WORK REPRESENTED AN 510 00:28:08,715 --> 00:28:11,284 OPPORTUNITY FOR THIS BODY 511 00:28:11,284 --> 00:28:12,118 UNOFFICIALLY THROUGH THE 512 00:28:12,118 --> 00:28:13,219 NATIONAL AUTISM COORDINATOR TO 513 00:28:13,219 --> 00:28:16,089 PRESENT THOSE RECOMMENDATIONS TO 514 00:28:16,089 --> 00:28:26,266 CONGRESS. 515 00:28:36,342 --> 00:28:38,578 WE APPRECIATE THE WORK YOU'VE 516 00:28:38,578 --> 00:28:39,679 DONE BECAUSE A LOT OF WHAT WE 517 00:28:39,679 --> 00:28:40,613 TALKED ABOUT IN THE ROOM AS YOU 518 00:28:40,613 --> 00:28:42,582 CAN SEE FROM THE PRESENTATION IS 519 00:28:42,582 --> 00:28:43,850 THE REPORT AND RECOMMENDATIONS 520 00:28:43,850 --> 00:28:44,350 TO CONGRESS. 521 00:28:44,350 --> 00:28:45,885 THANKS AND THANK YOU, SUSAN FOR 522 00:28:45,885 --> 00:28:46,719 PUTTING IT TOGETHER. 523 00:28:46,719 --> 00:28:48,755 >> THANK YOU. 524 00:28:48,755 --> 00:28:51,057 SO THAT IS THE MAIN PORTION OF 525 00:28:51,057 --> 00:28:51,791 THE NATIONAL AUTISM COORDINATOR 526 00:28:51,791 --> 00:28:54,093 UPDATE THIS TIME. 527 00:28:54,093 --> 00:28:56,095 WE DID PREPARE THE FULL LISTING 528 00:28:56,095 --> 00:28:59,098 OF ALL THE DIFFERENT ACTIVITIES 529 00:28:59,098 --> 00:29:01,334 ACROSS FEDERAL AGENCIES AND THE 530 00:29:01,334 --> 00:29:04,103 DOCUMENT ON THE WEB AND I 531 00:29:04,103 --> 00:29:05,772 NEGLECTED TO TELL EVERYONE 532 00:29:05,772 --> 00:29:07,173 TUNING IN ONLINE ALL THE 533 00:29:07,173 --> 00:29:08,241 MATERIALS ARE ON THE WEB. 534 00:29:08,241 --> 00:29:14,948 THEY CAN BE ACCESSED THERE. 535 00:29:14,948 --> 00:29:17,884 LOOK LIEU THE UPDATE AND KNOW 536 00:29:17,884 --> 00:29:20,653 I'M GOING TO TURN TO THE 537 00:29:20,653 --> 00:29:21,788 PRESENTATION WE HAVE FROM 538 00:29:21,788 --> 00:29:24,157 MEMBERS OF THE FEDERAL AGENCY 539 00:29:24,157 --> 00:29:28,328 WORK GROUP ON AUTISM THE GROUP I 540 00:29:28,328 --> 00:29:29,429 SHARE AS THE NATIONAL AUTISM 541 00:29:29,429 --> 00:29:29,829 COORDINATOR. 542 00:29:29,829 --> 00:29:34,534 THIS GROUP HAS A NUMBER OF 543 00:29:34,534 --> 00:29:35,001 DIFFERENT THINGS. 544 00:29:35,001 --> 00:29:36,769 A GROUP THAT MEETS IN A 545 00:29:36,769 --> 00:29:41,241 NON-PUBLIC FASHION BECAUSE WE'RE 546 00:29:41,241 --> 00:29:43,977 ABLE TO WORK ON INITIATIVES THAT 547 00:29:43,977 --> 00:29:46,713 ARE BEING PLANNED AND DISCUSSED 548 00:29:46,713 --> 00:29:49,382 IN PUBLIC AND ABLE TO TAKE INTO 549 00:29:49,382 --> 00:29:49,983 CONSIDERATION THE 550 00:29:49,983 --> 00:29:51,351 RECOMMENDATIONS OF THE IACC AND 551 00:29:51,351 --> 00:29:52,652 HOW TO THEY'LL BE IMPLEMENTED 552 00:29:52,652 --> 00:29:53,753 ACROSS THE FEDERAL AGENCIES. 553 00:29:53,753 --> 00:29:56,089 SO THIS ALL FEDERAL WORKING 554 00:29:56,089 --> 00:30:00,026 GROUP WAS INITIALLY STARTED 555 00:30:00,026 --> 00:30:05,498 SEVERAL YEARS AGO IN 2018 AND 556 00:30:05,498 --> 00:30:09,002 NOW WE MEET THREE TIMES A YEAR 557 00:30:09,002 --> 00:30:14,173 AS WE HAVE SPECIAL NEEDS TO TALK 558 00:30:14,173 --> 00:30:20,413 ABOUT INITIATIVES AND THIS IS 559 00:30:20,413 --> 00:30:22,482 WHAT I USE TO CARRY OUT WHAT 560 00:30:22,482 --> 00:30:25,451 THIS IACC HAS RECOMMENDED. 561 00:30:25,451 --> 00:30:29,556 THE INFORMATION WAS EXCHANGED 562 00:30:29,556 --> 00:30:30,557 AND HELPS NOT DUPLICATE EFFORT 563 00:30:30,557 --> 00:30:35,795 AND RESPONSIBILITIES. 564 00:30:35,795 --> 00:30:44,904 THE INFORMATION COMES BACK TO 565 00:30:44,904 --> 00:30:46,739 YOU IN REPORTS FROM HHS AND OUR 566 00:30:46,739 --> 00:30:53,646 OFFICE AND TRY TO DISSEMINATE 567 00:30:53,646 --> 00:30:57,584 THE INFORMATION AND IT'S V 568 00:30:57,584 --> 00:30:58,651 VOLUNTARY AND HAVE EXCELLENT 569 00:30:58,651 --> 00:30:58,952 MEMBERSHIP. 570 00:30:58,952 --> 00:31:03,089 THIS IS A LISTING OF ALL THE 571 00:31:03,089 --> 00:31:06,593 DIFFERENT AGENCIES AND MANY 572 00:31:06,593 --> 00:31:10,763 PEOPLE ARE ALSO HAVE ADDITIONAL 573 00:31:10,763 --> 00:31:13,232 AGENCIES AND DEPARTMENTS NOT ON 574 00:31:13,232 --> 00:31:18,404 THE IACC WITH THAT I'LL HAVE 575 00:31:18,404 --> 00:31:19,772 THIS PRESENTATION TODAY WHICH IS 576 00:31:19,772 --> 00:31:21,341 GOING TO BE AN OPPORTUNITY FOR 577 00:31:21,341 --> 00:31:28,147 FEDERAL AGENCY OFFICIAL TO SHARE 578 00:31:28,147 --> 00:31:31,884 SOME OF THEIR STRATEGY FOR THE 579 00:31:31,884 --> 00:31:34,754 STRATEGIC PLAN AND AUTISM 580 00:31:34,754 --> 00:31:37,857 THROUGH THEIR DISABILITY AND 581 00:31:37,857 --> 00:31:38,825 AUTISM PROGRAMS. 582 00:31:38,825 --> 00:31:40,126 WE'RE GOING HAVE SOME SPEAK 583 00:31:40,126 --> 00:31:43,596 TODAY AND SOME IN APRIL. 584 00:31:43,596 --> 00:31:48,134 WE'RE GOING TO HEAR FROM CHRISTY 585 00:31:48,134 --> 00:31:51,070 KAVU 586 00:31:51,070 --> 00:31:54,641 KAVULIC, MATTHEW MAENNER AND 587 00:31:54,641 --> 00:31:58,077 LISA GILOTTY, SCOTT ROBERTSON 588 00:31:58,077 --> 00:32:00,279 FROM THE DEPARTMENT OF LABOR, 589 00:32:00,279 --> 00:32:01,581 JEP FER JOHNSON FROM THE 590 00:32:01,581 --> 00:32:03,282 ADMINISTRATION FOR COMMUNITY 591 00:32:03,282 --> 00:32:10,723 LIVING, LEAH LOZIER, ALLISON 592 00:32:10,723 --> 00:32:12,125 MARVIN FROM THE SOCIAL SECURITY 593 00:32:12,125 --> 00:32:14,761 ADMINISTRATION AND ROBERT 594 00:32:14,761 --> 00:32:17,730 OCHSENDORF NOT A MEMBER OF FI WA 595 00:32:17,730 --> 00:32:19,799 BUT COLLABORATES WITH US. 596 00:32:19,799 --> 00:32:23,469 I'LL TURN IT OVER TO OUR FIRST 597 00:32:23,469 --> 00:32:23,736 SPEAKER. 598 00:32:23,736 --> 00:32:28,141 EACH FEEL FREE TO INTRODUCE 599 00:32:28,141 --> 00:32:33,813 YOURSELVES AS A START. 600 00:32:33,813 --> 00:32:36,049 >> THANK YOU. 601 00:32:36,049 --> 00:32:40,687 MY NAME IS CHRISTIE KAVULIC IN 602 00:32:40,687 --> 00:32:45,391 THE SPECIAL EDUCATION PROGRAMS 603 00:32:45,391 --> 00:32:49,962 PART OF THE OFFICE OF SPECIAL 604 00:32:49,962 --> 00:32:52,065 EDUCATION AND WITHIN THE 605 00:32:52,065 --> 00:32:54,233 DEPARTMENT, OFFICE OF THE 606 00:32:54,233 --> 00:32:55,735 REHABILITATIVE SERVICES AND THE 607 00:32:55,735 --> 00:32:57,804 INSTITUTE FOR EDUCATION SCIENCES 608 00:32:57,804 --> 00:33:02,608 IS WHERE A LARGE PART OF OUR 609 00:33:02,608 --> 00:33:04,143 WORK AROUND PEOPLE WITH 610 00:33:04,143 --> 00:33:06,245 DISABILITIES AND PEOPLE WITH 611 00:33:06,245 --> 00:33:10,750 AUTISM IS SITUATED. 612 00:33:10,750 --> 00:33:13,319 WITHIN THAT WE HAVE THE OFFICE 613 00:33:13,319 --> 00:33:14,087 OF SPECIAL EDUCATION PROGRAMS 614 00:33:14,087 --> 00:33:18,091 AND THEN THE REHABILITATIVE 615 00:33:18,091 --> 00:33:19,158 SERVICES ADMINISTRATION. 616 00:33:19,158 --> 00:33:22,762 RSA ADMINISTERS TITLE IV OF THE 617 00:33:22,762 --> 00:33:27,366 WORKFORCE INNOVATION AND 618 00:33:27,366 --> 00:33:29,836 OPPORTUNITY ACT AND WHERE I'M 619 00:33:29,836 --> 00:33:32,138 FROM IS THE IDEA WHICH IS THE 620 00:33:32,138 --> 00:33:40,947 ACT THAT PROVIDES SERVICES TO 621 00:33:40,947 --> 00:33:42,749 INST 622 00:33:42,749 --> 00:33:44,117 INF 623 00:33:44,117 --> 00:33:45,218 INFANTS, TODDLERS AND I'LL FOCUS 624 00:33:45,218 --> 00:33:48,121 ON SOME OF THE WORK OF THE 625 00:33:48,121 --> 00:33:52,125 OFFICE OF SPECIAL EDUCATION 626 00:33:52,125 --> 00:33:54,494 PROGRAM AS WELL AS THE WORK OF 627 00:33:54,494 --> 00:33:55,228 THE INSTITUTE OF EDUCATION 628 00:33:55,228 --> 00:33:56,262 SCIENCES UNDER THE UMBRELLA OF 629 00:33:56,262 --> 00:33:58,798 THE IDEA. 630 00:33:58,798 --> 00:34:04,771 SO THE IDEA SERVES ABOUT 900,000 631 00:34:04,771 --> 00:34:08,341 CHILDREN WITH AUTISM IN ADDITION 632 00:34:08,341 --> 00:34:10,943 TO INFANTS, TODDLERS AND 633 00:34:10,943 --> 00:34:12,278 CHILDREN WITH AUTISM IN THEIR 634 00:34:12,278 --> 00:34:12,545 FAMILIES. 635 00:34:12,545 --> 00:34:14,347 THE TOPICS WE FOCUS ON THROUGH 636 00:34:14,347 --> 00:34:19,585 NATIONAL ACTIVITIES FUNDING ARE 637 00:34:19,585 --> 00:34:22,455 RESEARCH, TECHNICAL ASSISTANCE 638 00:34:22,455 --> 00:34:25,792 AND DISSEMINATION, PERSONNEL 639 00:34:25,792 --> 00:34:29,095 PREPARATION, TECHNOLOGY, MEDIA 640 00:34:29,095 --> 00:34:31,130 AND PARENT PROGRAMS. 641 00:34:31,130 --> 00:34:34,767 THESE NATIONAL ACTIVITIES ARE 642 00:34:34,767 --> 00:34:40,773 FUNDED UNDER PART D OF THE IDEA. 643 00:34:40,773 --> 00:34:44,143 I WANTED TO FOCUS SPECIFICALLY 644 00:34:44,143 --> 00:34:46,846 ON A FEW AREAS THAT WE ARE 645 00:34:46,846 --> 00:34:50,917 FOCUSSED ON IN OCEP THIS FISCAL 646 00:34:50,917 --> 00:34:52,118 YEAR WITHIN THE PERSONNEL 647 00:34:52,118 --> 00:34:55,955 PREPARATION LINE ITEM AND WITHIN 648 00:34:55,955 --> 00:34:58,658 OUR TECHNOLOGY AND MEDIA LINE 649 00:34:58,658 --> 00:34:59,058 ITEM. 650 00:34:59,058 --> 00:35:02,995 ACROSS THE EARLY INTERVENTION 651 00:35:02,995 --> 00:35:04,430 AND SPECIAL EDUCATION SYSTEMS WE 652 00:35:04,430 --> 00:35:08,167 HAVE A SHORTAGE OF WORKFORCE WHO 653 00:35:08,167 --> 00:35:09,535 ARE PREPARED TO SUPPORT CHILDREN 654 00:35:09,535 --> 00:35:13,139 WITH DISABILITIES AND THEIR 655 00:35:13,139 --> 00:35:15,208 FAMILIES INCLUDING CHILDREN WITH 656 00:35:15,208 --> 00:35:18,444 AUTISM AND SO OUR INVESTMENTS 657 00:35:18,444 --> 00:35:21,113 ARE TRYING TO ADDRESS THE 658 00:35:21,113 --> 00:35:22,448 SHORTAGE OF THE WORKFORCE. 659 00:35:22,448 --> 00:35:26,152 WE OFFER ON THE SCREEN THIS 660 00:35:26,152 --> 00:35:30,489 COMING FISCAL YEAR THESE VARIOUS 661 00:35:30,489 --> 00:35:36,128 PROGRAMS AND A LARGE PART OF 662 00:35:36,128 --> 00:35:38,898 THEM ARE PREPARATION PROGRAMS SO 663 00:35:38,898 --> 00:35:41,667 UNIVERSITIES APPLY FOR FUNDING 664 00:35:41,667 --> 00:35:44,337 AND THAT FUNDING THEN GOES TO 665 00:35:44,337 --> 00:35:46,505 SUPPORT SCHOLARS IN COMPLETING 666 00:35:46,505 --> 00:35:51,611 THEIR BACHELORS, MASTER'S 667 00:35:51,611 --> 00:35:56,782 CERTIFICATE, CLINICAL DOCTORATE 668 00:35:56,782 --> 00:35:58,618 TO WORK WITHIN THE EARLY 669 00:35:58,618 --> 00:35:59,485 INTERVENTION SPECIAL EDUCATION 670 00:35:59,485 --> 00:36:09,228 OR RELATED SERVICES FIELDS. 671 00:36:09,228 --> 00:36:11,530 IF SOMEONE RECEIVES THEIR DEGREE 672 00:36:11,530 --> 00:36:12,798 THROUGH THE GRANT THEY OWE 673 00:36:12,798 --> 00:36:13,866 SERVICE TO THE FIELD. 674 00:36:13,866 --> 00:36:16,135 THAT'S WAY A WAY TO SUPPORT 675 00:36:16,135 --> 00:36:21,407 PEOPLE ENTERING THE FIELD AND 676 00:36:21,407 --> 00:36:30,650 WORKING IN THE FIELD. 677 00:36:30,650 --> 00:36:36,122 SOME INVESTMENTS ARE 678 00:36:36,122 --> 00:36:38,324 SPECIFICALLY GEARED TOWARDS 679 00:36:38,324 --> 00:36:39,825 MINORITY SERVING INSTITUTIONS 680 00:36:39,825 --> 00:36:43,095 INCLUDING HBCUs AND HISTORICALLY 681 00:36:43,095 --> 00:36:44,230 BLACK COLLEGES AND UNIVERSITIES 682 00:36:44,230 --> 00:36:48,768 AND TRIBAL COLLEGES AS WELL. 683 00:36:48,768 --> 00:36:51,470 THE OTHER AREA SO HOW WE HAVE 684 00:36:51,470 --> 00:36:54,941 THOSE PROGRAMS SET UP IS THAT 685 00:36:54,941 --> 00:36:56,142 APPLICANTS INDICATE WHO THEY 686 00:36:56,142 --> 00:36:59,712 WILL BE PREPARING WITHIN THEIR 687 00:36:59,712 --> 00:37:02,381 APPLICATIONS AND SOME OF THESE 688 00:37:02,381 --> 00:37:05,117 APPLICANTS SPECIFICALLY IDENTIFY 689 00:37:05,117 --> 00:37:06,385 THEY'LL BE PREPARING PERSONNEL 690 00:37:06,385 --> 00:37:08,354 TO WORK IN THE FIELD TO HAVE A 691 00:37:08,354 --> 00:37:10,790 SPECIALIZATION OF WORKING WITH 692 00:37:10,790 --> 00:37:11,924 CHILDREN WITH AUTISM. 693 00:37:11,924 --> 00:37:15,428 NOT ALL THE GRANTS DO BUT ACROSS 694 00:37:15,428 --> 00:37:17,296 ALL THESE AREAS THERE ARE GRANTS 695 00:37:17,296 --> 00:37:19,165 THAT SPECIFICALLY FOCUS ON 696 00:37:19,165 --> 00:37:23,469 SUPPORTING CHILDREN WITH AUTISM. 697 00:37:23,469 --> 00:37:24,537 OUR EDUCATIONAL TECHNOLOGY 698 00:37:24,537 --> 00:37:27,940 PROGRAM, THIS IS AN AREA THAT 699 00:37:27,940 --> 00:37:30,977 WE'RE FOCUSSED ON SUPPORTING 700 00:37:30,977 --> 00:37:32,144 EDUCATIONAL TECHNOLOGIES TO BE 701 00:37:32,144 --> 00:37:33,980 IMPLEMENTED WITHIN EARLY 702 00:37:33,980 --> 00:37:34,780 INTERVENTION AND SCHOOL SYSTEMS 703 00:37:34,780 --> 00:37:40,853 AND SO THE STEPPING UP 704 00:37:40,853 --> 00:37:42,521 TECHNOLOGY IMPLEMENTATION TAKES 705 00:37:42,521 --> 00:37:43,489 A TECHNOLOGY AND SUPPORTS THE 706 00:37:43,489 --> 00:37:45,324 IMPLEMENTATION OF IT IN A 707 00:37:45,324 --> 00:37:46,659 REAL-WORLD EDUCATIONAL SETTING 708 00:37:46,659 --> 00:37:50,096 AND THEN WE ARE GOING TO BE 709 00:37:50,096 --> 00:37:51,163 FUNDING THIS YEAR THE NATIONAL 710 00:37:51,163 --> 00:37:53,599 CENTER ON DIGITAL ACCESS AND 711 00:37:53,599 --> 00:37:56,135 EDUCATION TO SUPPORT MORE 712 00:37:56,135 --> 00:38:00,006 ACCESSIBLE EDUCATION MATERIALS 713 00:38:00,006 --> 00:38:01,941 FOR CHILDREN. 714 00:38:01,941 --> 00:38:04,777 I WANTED TO HIGHLIGHT WHERE THE 715 00:38:04,777 --> 00:38:06,379 INSTITUTE FOR EDUCATION OF 716 00:38:06,379 --> 00:38:11,517 SCIENCES, THE NATIONAL CENTER 717 00:38:11,517 --> 00:38:14,253 FOR SPECIAL EDUCATION RESEARCH, 718 00:38:14,253 --> 00:38:16,722 THEY'LL BE COMPETING FOR THE 719 00:38:16,722 --> 00:38:18,524 UPCOMING YEAR. 720 00:38:18,524 --> 00:38:22,561 IT FUNDS SPECIAL EDUCATION 721 00:38:22,561 --> 00:38:23,429 RESEARCH ACROSS FOUR TYPES OF 722 00:38:23,429 --> 00:38:25,765 RESEARCH PROJECTS, EXPLORATION, 723 00:38:25,765 --> 00:38:27,666 DEVELOPMENT AND INNOVATION, 724 00:38:27,666 --> 00:38:28,367 IMPACT AND MEASUREMENT. 725 00:38:28,367 --> 00:38:31,604 THE WAY THIS IS STRUCTURED IS 726 00:38:31,604 --> 00:38:33,873 THAT IT'S FIELD INITIATED. 727 00:38:33,873 --> 00:38:37,109 SO THOSE WHO COME IN AND PROPOSE 728 00:38:37,109 --> 00:38:39,278 A PROJECT AND SOME OF THE 729 00:38:39,278 --> 00:38:41,847 PROJECTS CAN BE -- ARE PROPOSED 730 00:38:41,847 --> 00:38:44,417 ARE SPECIFIC TO SUPPORTING 731 00:38:44,417 --> 00:38:46,786 CHILDREN WITH AUTISM IN ONE OF 732 00:38:46,786 --> 00:38:51,824 THESE AREAS. 733 00:38:51,824 --> 00:38:54,560 THE OTHER PROGRAM FUNDED ON AN 734 00:38:54,560 --> 00:38:55,995 ANNUAL BASIS ARE TRAINING 735 00:38:55,995 --> 00:38:57,430 PROGRAMS AND SPECIAL EDUCATION 736 00:38:57,430 --> 00:39:00,132 TO PREPARE INDIVIDUALS TO 737 00:39:00,132 --> 00:39:02,802 CONDUCT RIGOROUS AND RELEVANT 738 00:39:02,802 --> 00:39:04,537 SPECIAL EDUCATION AND EARLY 739 00:39:04,537 --> 00:39:05,004 INTERVENTION RESEARCH. 740 00:39:05,004 --> 00:39:07,239 THESE GENERALLY GO TO NEW 741 00:39:07,239 --> 00:39:08,774 FACULTY THAT ARE ENTERING THE 742 00:39:08,774 --> 00:39:13,145 FIELD SO EARLY CAREER FACULTY. 743 00:39:13,145 --> 00:39:16,482 THOSE IN POST-DOCTORAL SO THEY 744 00:39:16,482 --> 00:39:19,151 CAN START DEVELOPING THEIR AREA 745 00:39:19,151 --> 00:39:21,620 OF RESEARCH AND SPECIALIZATION 746 00:39:21,620 --> 00:39:26,092 AND AGAIN IT'S FIELD INITIATED 747 00:39:26,092 --> 00:39:31,230 SO APPLICANTS MAY PROPOSE 748 00:39:31,230 --> 00:39:33,966 RESEARCH THAT TARGETS RESEARCH 749 00:39:33,966 --> 00:39:35,568 AROUND AUTISM AND A NEW GRANT 750 00:39:35,568 --> 00:39:38,337 FUNDING FOR THIS UPCOMING YEAR 751 00:39:38,337 --> 00:39:40,806 AGAIN WITH THE FOCUS ON THE 752 00:39:40,806 --> 00:39:42,241 WORKFORCE BECAUSE WE KNOW THERE 753 00:39:42,241 --> 00:39:44,743 ARE SHORTAGES IS THE CENTER ON 754 00:39:44,743 --> 00:39:46,745 THE K-IS IT SPECIAL EDUCATION 755 00:39:46,745 --> 00:39:49,949 WORKFORCE GRANT AND IT'S TO FUND 756 00:39:49,949 --> 00:39:52,118 A RESEARCH AND DEVELOPMENT 757 00:39:52,118 --> 00:39:54,320 CENTER TO TRY TO LEARN 758 00:39:54,320 --> 00:39:55,121 ADDITIONAL RESEARCH ON THE 759 00:39:55,121 --> 00:39:56,155 SPECIAL EDUCATION WORKFORCE AND 760 00:39:56,155 --> 00:39:58,624 HOW TO SUPPORT THEM. 761 00:39:58,624 --> 00:40:02,428 THEN THE LAST SLIDE I WANTED TO 762 00:40:02,428 --> 00:40:04,797 HIGHLIGHT WAS A DOCUMENT THE 763 00:40:04,797 --> 00:40:05,965 DEPARTMENT OF EDUCATION RELEASED 764 00:40:05,965 --> 00:40:07,399 IN COLLABORATION WITH THE 765 00:40:07,399 --> 00:40:09,568 DEPARTMENT OF HEALTH AND HUMAN 766 00:40:09,568 --> 00:40:11,203 SERVICES THAT MAY BE OF INTEREST 767 00:40:11,203 --> 00:40:12,638 TO THE COMMITTEE. 768 00:40:12,638 --> 00:40:15,341 IT'S A POLICY STATEMENT ON THE 769 00:40:15,341 --> 00:40:18,377 INCLUSION OF CHILDREN WITH 770 00:40:18,377 --> 00:40:19,411 DISABILITIES IN EARLY CHILDHOOD 771 00:40:19,411 --> 00:40:22,381 PROGRAMS AND THE STATEMENT IS A 772 00:40:22,381 --> 00:40:25,551 REVISION OF A STATEMENT RELEASED 773 00:40:25,551 --> 00:40:27,887 IN 2015. 774 00:40:27,887 --> 00:40:31,590 THE VISION OF THE STATEMENT IS 775 00:40:31,590 --> 00:40:34,627 THAT WE SET THE EXPECTATION THAT 776 00:40:34,627 --> 00:40:35,895 ALL YOUNG CHILDREN WITH 777 00:40:35,895 --> 00:40:37,530 DISABILITIES SHOULD HAVE ACCESS 778 00:40:37,530 --> 00:40:40,633 TO HIGH QUALITY, INCLUSIVE EARLY 779 00:40:40,633 --> 00:40:42,368 CHILDHOOD PROGRAMS THAT PROVIDE 780 00:40:42,368 --> 00:40:43,269 INDIVIDUALIZED AND APPROPRIATE 781 00:40:43,269 --> 00:40:46,038 SUPPORT TO THEY CAN FULLY 782 00:40:46,038 --> 00:40:48,140 PARTICIPATE ALONG SIDE THEIR 783 00:40:48,140 --> 00:40:49,275 PEERS WITHOUT DISABILITIES, MEET 784 00:40:49,275 --> 00:40:51,343 HIGH EXPECTATIONS AND ACHIEVE 785 00:40:51,343 --> 00:40:53,679 THEIR FULL POTENTIAL. 786 00:40:53,679 --> 00:40:56,182 SO THIS POLICY STATEMENT OFFERED 787 00:40:56,182 --> 00:40:57,449 RECOMMENDATIONS TO STATES AND 788 00:40:57,449 --> 00:41:00,386 LOCAL PROGRAMS HOW TO LOOK AT 789 00:41:00,386 --> 00:41:02,188 THEIR SYSTEMS ACROSS DIFFERENT 790 00:41:02,188 --> 00:41:04,790 AREAS TO INCREASE INCLUSIVE 791 00:41:04,790 --> 00:41:07,326 EARLY CHILDHOOD PROGRAMS FOR 792 00:41:07,326 --> 00:41:07,893 CHILDREN WITH DISABILITIES. 793 00:41:07,893 --> 00:41:18,070 THANK YOU. 794 00:41:23,509 --> 00:41:23,976 SUSAN: THANK YOU. 795 00:41:23,976 --> 00:41:31,617 MATT MAENNER. 796 00:41:31,617 --> 00:41:38,524 MATT: I'M WITH THE CDC. 797 00:41:38,524 --> 00:41:40,859 IT'S PUBLIC HEALTH AGENCY WITH A 798 00:41:40,859 --> 00:41:42,861 BROAD PUBLIC HEALTH MISSION AND 799 00:41:42,861 --> 00:41:45,497 MORE SPECIFIC TO AUTISM, CDC'S 800 00:41:45,497 --> 00:41:47,399 AUTISM PROGRAMS AND ACTIVITIES 801 00:41:47,399 --> 00:41:48,534 WERE FIRST DESCRIBED IN THE 802 00:41:48,534 --> 00:41:51,036 CHILDREN'S HEALTH ACT OF 2000 803 00:41:51,036 --> 00:41:54,673 AND RECENTLY IN THE AUTISM CARES 804 00:41:54,673 --> 00:41:56,041 ACT. 805 00:41:56,041 --> 00:41:57,443 CDC AUTISM PROGRAMS INCLUDE 806 00:41:57,443 --> 00:41:58,844 SURVEILLANCE INCLUDING TRACKING 807 00:41:58,844 --> 00:42:02,114 AUTISM THROUGH THE AUTISM AND 808 00:42:02,114 --> 00:42:03,282 DEVELOPMENT DISABILITIES 809 00:42:03,282 --> 00:42:06,185 MONITORING NETWORK, CONDUCTING 810 00:42:06,185 --> 00:42:09,755 RESEARCH THROUGH THE STUDY TO 811 00:42:09,755 --> 00:42:13,058 EXPLORE EARLY DEVELOPMENT OR 812 00:42:13,058 --> 00:42:15,027 SEED AND LEARN THE SIGNS ACT 813 00:42:15,027 --> 00:42:15,527 EARLY PROGRAM. 814 00:42:15,527 --> 00:42:18,397 WHILE SOME OF THESE PROGRAMS 815 00:42:18,397 --> 00:42:21,867 HAVE EXISTED FOR MORE THAN A 816 00:42:21,867 --> 00:42:24,837 DECADE, CDC HAS INCREASED ITS 817 00:42:24,837 --> 00:42:26,005 FOCUS ON AUTISM ACROSS THE LIFE 818 00:42:26,005 --> 00:42:28,774 SPAN AND ADJUSTING DISPARITIES 819 00:42:28,774 --> 00:42:29,908 THROUGH PUBLIC HEALTH RESEARCH 820 00:42:29,908 --> 00:42:32,311 AND I DIDN'T HAVE TIME TO FOCUS 821 00:42:32,311 --> 00:42:34,146 ON THE SEED RESEARCH STUDY THIS 822 00:42:34,146 --> 00:42:39,385 MORNING BUT WANTED TO MENTION IN 823 00:42:39,385 --> 00:42:45,457 THE PAST YEAR SEED LAUNCH A 824 00:42:45,457 --> 00:42:46,225 LONGITUDINAL PHASE FOLLOWING UP 825 00:42:46,225 --> 00:42:48,927 ON FORMER SEED PARTICIPANTS NOW 826 00:42:48,927 --> 00:42:54,767 ADOLESCENTS OR YOUNG ADULTS. 827 00:42:54,767 --> 00:42:57,136 TO HIGHLIGHT THE RECENT 828 00:42:57,136 --> 00:42:57,803 ACTIVITIES FROM OUR SURVEILLANCE 829 00:42:57,803 --> 00:43:01,974 PROGRAM THE AUTISM AND 830 00:43:01,974 --> 00:43:04,143 DEVELOPMENT NETWORK TRACKS 831 00:43:04,143 --> 00:43:05,644 PREVALENCE OF AUTISM AMONG 832 00:43:05,644 --> 00:43:08,147 CHILDREN AGE 8 AND PROGRESS IN 833 00:43:08,147 --> 00:43:09,214 EARLY IDENTIFICATION AMONG 834 00:43:09,214 --> 00:43:12,851 CHILDREN AGE 4 AND SEEKS TO 835 00:43:12,851 --> 00:43:14,753 BETTER UNDERSTAND THE NEEDS OF 836 00:43:14,753 --> 00:43:16,021 ADOLESCENTS ON THE SPECTRUM AS 837 00:43:16,021 --> 00:43:20,793 THEY PREPARE TO TRANSITION TO 838 00:43:20,793 --> 00:43:22,995 ADULTHOOD AND POST HIGH SCHOOL 839 00:43:22,995 --> 00:43:23,262 EXIT. 840 00:43:23,262 --> 00:43:27,433 SO LAST APRIL, CDC PRESENTED TO 841 00:43:27,433 --> 00:43:28,834 THE IACC ON THE LATEST DATA 842 00:43:28,834 --> 00:43:32,137 INCLUDING UPDATED PREVALENCE 843 00:43:32,137 --> 00:43:35,774 ESTIMATES AND SHOWED DISRUPTIONS 844 00:43:35,774 --> 00:43:37,776 TO EARLY IDENTIFICATION THAT 845 00:43:37,776 --> 00:43:40,412 COINCIDED WITH THE ONSET OF THE 846 00:43:40,412 --> 00:43:41,347 COVID-19 PANDEMIC. 847 00:43:41,347 --> 00:43:43,782 AT THE BEGINNING OF THIS LAST 848 00:43:43,782 --> 00:43:47,786 YEAR CDC ALSO RECEIVED A BUDGET 849 00:43:47,786 --> 00:43:51,390 INCREASE TO EXPAND ADDM AND THE 850 00:43:51,390 --> 00:43:53,225 TEAM WORKED TO ESTABLISH FIVE 851 00:43:53,225 --> 00:43:55,127 NEW SITES TO INCREASE THE NUMBER 852 00:43:55,127 --> 00:44:00,466 OF SITES COLLECTING DATA ON 853 00:44:00,466 --> 00:44:01,433 ADOLESCENCE AND CDC WAS DIRECTED 854 00:44:01,433 --> 00:44:06,438 TO USE THE ADDM INFRASTRUCTURE 855 00:44:06,438 --> 00:44:09,775 TO RE-ESTABLISH CEREBRAL PALSY 856 00:44:09,775 --> 00:44:13,412 SURVEILLANCE AND IN 2020 THE 857 00:44:13,412 --> 00:44:16,715 FIRST PUBLICATIONS FROM THE ADDM 858 00:44:16,715 --> 00:44:18,951 PAPERS CAME OUT AND FOCUSSED ON 859 00:44:18,951 --> 00:44:22,388 THE HEALTH AND CO-OCCURRING 860 00:44:22,388 --> 00:44:23,455 CONDITIONS OF CHILDREN AGE 16 861 00:44:23,455 --> 00:44:29,962 AND THEN A SECOND PUBLICATION 862 00:44:29,962 --> 00:44:31,530 LOOKED AT SERVICES AND SUPPORTS 863 00:44:31,530 --> 00:44:34,800 INDICATED IN IAPs AND TRANSITION 864 00:44:34,800 --> 00:44:40,939 PLANNING GOALS. 865 00:44:40,939 --> 00:44:44,143 THE LEARN THE SIGNS ACT EARLY 866 00:44:44,143 --> 00:44:47,012 HAS MONITORING OF ALL CHILDREN 867 00:44:47,012 --> 00:44:48,547 AND EARLY IDENTIFICATION OF 868 00:44:48,547 --> 00:44:49,348 DEVELOPMENT DELAYS TO CHILDREN 869 00:44:49,348 --> 00:44:51,216 AND THEIR FAMILIES CAN RECEIVE 870 00:44:51,216 --> 00:44:52,251 SERVICES AND SUPPORTS THEY NEED. 871 00:44:52,251 --> 00:44:56,121 THEY DO THIS THROUGH A VARIETY 872 00:44:56,121 --> 00:44:57,756 OF DIFFERENT ACTIVITIES 873 00:44:57,756 --> 00:44:59,324 INCLUDING PRODUCING AND 874 00:44:59,324 --> 00:45:00,459 PROVIDING FREE TOOLS AND 875 00:45:00,459 --> 00:45:02,661 RESOURCES SUCH AS THE MILESTONE 876 00:45:02,661 --> 00:45:04,263 TRACKER APP FOR FAMILIES AND 877 00:45:04,263 --> 00:45:06,565 PROFESSIONALS WHO SERVE THEM. 878 00:45:06,565 --> 00:45:09,701 WE LEARNED EARLIER THIS WEEK THE 879 00:45:09,701 --> 00:45:13,806 MILESTONE TRACKER APP IS 880 00:45:13,806 --> 00:45:18,010 PROBABLY GOING TO CROSS THE 2 881 00:45:18,010 --> 00:45:18,977 MILLION DOWNLOAD THRESHOLD ANY 882 00:45:18,977 --> 00:45:21,213 DAY AND THINK BY MONDAY WE CAN 883 00:45:21,213 --> 00:45:22,247 SAY 2 MILLION. 884 00:45:22,247 --> 00:45:25,918 THEY SUPPORTED SEVEN COHORTS OF 885 00:45:25,918 --> 00:45:27,753 ACT EARLY AMBASSADORS. 886 00:45:27,753 --> 00:45:29,788 THEY'RE STATE OR TERRITORIAL 887 00:45:29,788 --> 00:45:33,192 LEADERS WORKING TO INCREASE 888 00:45:33,192 --> 00:45:34,092 COLLABORATION AND COORDINATION 889 00:45:34,092 --> 00:45:35,194 AMONG EARLY CHILDHOOD PROGRAMS 890 00:45:35,194 --> 00:45:37,830 AND LEARN THE SIGNS ACT EARLY 891 00:45:37,830 --> 00:45:39,531 INTO EARLY CHILDHOOD PROGRAMS. 892 00:45:39,531 --> 00:45:43,035 AS OF LAST OCTOBER, THE PROGRAM 893 00:45:43,035 --> 00:45:46,171 HAS GROWN TO 60 AMBASSADORS IN 894 00:45:46,171 --> 00:45:48,173 49 STATES, WASHINGTON, D.C., 895 00:45:48,173 --> 00:45:50,409 FOUR TERRITORIES AND THREE 896 00:45:50,409 --> 00:45:51,109 COMMUNITIES AND BOTH 897 00:45:51,109 --> 00:45:53,245 INDIVIDUALLY AND AS A GROUP THEY 898 00:45:53,245 --> 00:46:01,386 ARE JUST AMAZING PEOPLE. 899 00:46:01,386 --> 00:46:02,855 THEY DEVELOPED SIGNS TO 900 00:46:02,855 --> 00:46:03,822 INTEGRATE THE DEVELOPMENT 901 00:46:03,822 --> 00:46:06,124 MONITORING INTO PROGRAMS AND 902 00:46:06,124 --> 00:46:07,125 SYSTEMS THAT SERVE YOUNG 903 00:46:07,125 --> 00:46:09,895 CHILDREN AND THEIR FAMILIES 904 00:46:09,895 --> 00:46:10,462 PARTICULARLY FOCUSSING ON 905 00:46:10,462 --> 00:46:12,130 REACHING LOW RESOURCE FAMILIES 906 00:46:12,130 --> 00:46:15,767 THROUGH PARTNERSHIPS WITH THE 907 00:46:15,767 --> 00:46:18,637 USDA WIC PROGRAM AND 908 00:46:18,637 --> 00:46:19,137 COLLABORATIVE LEARNING 909 00:46:19,137 --> 00:46:20,472 OPPORTUNITIES AND COLLABORATIVE 910 00:46:20,472 --> 00:46:22,841 ASSISTANCE PROVIDED THROUGH WIC 911 00:46:22,841 --> 00:46:25,410 STAFF IN 23 STATES AND TWO 912 00:46:25,410 --> 00:46:25,711 TERRITORIES. 913 00:46:25,711 --> 00:46:30,983 AND THEY ALSO ARE COLLABORATING 914 00:46:30,983 --> 00:46:36,388 WITH THE AAP ABOUT SCREENING, 915 00:46:36,388 --> 00:46:38,123 REFERRAL AND FOLLOW-UP AND WE'RE 916 00:46:38,123 --> 00:46:42,828 NOW WORKING CLOSELY WITH HRSA TO 917 00:46:42,828 --> 00:46:45,297 EMBED THESE WITH THEIR GRANTEES 918 00:46:45,297 --> 00:46:46,832 TO FOCUS ON EARLY CHILDHOOD 919 00:46:46,832 --> 00:46:52,871 DEVELOPMENT. 920 00:46:52,871 --> 00:46:56,141 I THINK THAT'S IT FOR ME. 921 00:46:56,141 --> 00:47:03,148 THANK YOU. 922 00:47:03,148 --> 00:47:04,950 SUSAN: NEXT WE'RE HEAR FROM LISA 923 00:47:04,950 --> 00:47:09,922 GILOTTY FROM THE NIH. 924 00:47:09,922 --> 00:47:11,623 LISA: GOOD MORNING. 925 00:47:11,623 --> 00:47:15,260 I'M A PROGRAM OFFICER WITH NIMH 926 00:47:15,260 --> 00:47:17,095 AND I'LL BE HIGHLIGHTING A 927 00:47:17,095 --> 00:47:19,498 COUPLE NIH INITIATIVES THAT MAY 928 00:47:19,498 --> 00:47:21,066 BE OF INTEREST TO THE COMMITTEE 929 00:47:21,066 --> 00:47:31,476 OR MAY NOT BE AWARE OF. 930 00:47:32,210 --> 00:47:34,212 IT SUPPORTS RESEARCH INCLUDING 931 00:47:34,212 --> 00:47:35,814 INNOVATIVE AND COST-IVE SERVICES 932 00:47:35,814 --> 00:47:37,215 AND INTERVENTIONS. 933 00:47:37,215 --> 00:47:42,354 THE AWARDS SUPPORT RESEARCH AT 934 00:47:42,354 --> 00:47:43,989 INDIVIDUAL CENTERS FEATURING 935 00:47:43,989 --> 00:47:45,991 COLLABORATIONS BETWEEN A TEAM OF 936 00:47:45,991 --> 00:47:50,462 EXPERTS AND ADD RESEARCH 937 00:47:50,462 --> 00:47:53,932 NETWORKS WHICH INVOLVE MULTIPLE 938 00:47:53,932 --> 00:47:54,466 INSTITUTIONS. 939 00:47:54,466 --> 00:47:58,070 EACH HAS ACE HAS ADOPTED A PLAN 940 00:47:58,070 --> 00:47:59,805 FOR DIVERSE PERSPECTIVES THAT 941 00:47:59,805 --> 00:48:00,706 OUTLINES STRATEGIES TO INCREASE 942 00:48:00,706 --> 00:48:03,709 THE NUMBER OF INDIVIDUALS FROM 943 00:48:03,709 --> 00:48:05,410 TRADITIONALLY UNDER REPRESENTED 944 00:48:05,410 --> 00:48:06,812 BACKGROUNDS IN THE AUTISM BIO 945 00:48:06,812 --> 00:48:09,381 MEDICAL AND BEHAVIORAL AND 946 00:48:09,381 --> 00:48:10,048 CLINICAL WORKFORCE AS WELL AS TO 947 00:48:10,048 --> 00:48:14,486 INCREASE THE PARTICIPATION OF 948 00:48:14,486 --> 00:48:15,153 UNDER REPRESENTED POPULATIONS IN 949 00:48:15,153 --> 00:48:15,654 AUTISM RESEARCH. 950 00:48:15,654 --> 00:48:19,891 THE CENTERS ARE SUPPORTED BY A 951 00:48:19,891 --> 00:48:21,159 NUMBER OF NIH INSTITUTES 952 00:48:21,159 --> 00:48:28,000 INCLUDING NICHD AND NIDCD AND 953 00:48:28,000 --> 00:48:29,001 NIH AND NINDS. 954 00:48:29,001 --> 00:48:30,936 AT THE BOTTOM OF THE SLIDE YOU 955 00:48:30,936 --> 00:48:32,471 CAN SEE INFORMATION ABOUT THE 956 00:48:32,471 --> 00:48:33,505 FUNDING AND SCOPE OF THE AWARDS, 957 00:48:33,505 --> 00:48:38,777 THE CURRENT GROUP OF AWARDS WILL 958 00:48:38,777 --> 00:48:39,945 BE ACTIVE UNTIL 2027 AND THERE'S 959 00:48:39,945 --> 00:48:42,748 A LINK TO GET MORE SPECIFIC 960 00:48:42,748 --> 00:48:44,249 INFORMATION ABOUT EACH OF THE 961 00:48:44,249 --> 00:48:54,393 CENTERS. 962 00:49:21,053 --> 00:49:24,156 >> THEY'RE LOCATED IN CHILDREN'S 963 00:49:24,156 --> 00:49:28,126 HOSPITAL TO PROVIDE RESEARCH IN 964 00:49:28,126 --> 00:49:28,860 DEVELOPMENTAL DISABILITIES 965 00:49:28,860 --> 00:49:31,296 INCLUDING AUTISM USING 966 00:49:31,296 --> 00:49:31,930 INTEGRATED APPROACHED TO ADVANCE 967 00:49:31,930 --> 00:49:33,598 THE DEVELOPMENT OF SERVICES AND 968 00:49:33,598 --> 00:49:36,134 INTERVENTIONS FOR IDDs. 969 00:49:36,134 --> 00:49:38,937 THE RESEARCH PROJECTS INCLUDE 970 00:49:38,937 --> 00:49:41,206 APPROACHES TO ED UNDERSTANDING 971 00:49:41,206 --> 00:49:43,675 OF RISK AND RESILIENCE, USE OF 972 00:49:43,675 --> 00:49:45,644 NOVEL TECHNOLOGIES TO ASSESS 973 00:49:45,644 --> 00:49:46,745 IMPROVEMENT IN TREATMENT AND 974 00:49:46,745 --> 00:49:49,147 DEVELOPMENT OF INTERVENTIONS FOR 975 00:49:49,147 --> 00:49:54,453 MANAGEMENT OF CO-OCCURRING 976 00:49:54,453 --> 00:49:58,023 MENTAL HEALTH CONDITIONS. 977 00:49:58,023 --> 00:49:59,858 THE CURRENT GROUP WILL BE ACTIVE 978 00:49:59,858 --> 00:50:01,960 UNTIL 2025 AND AT THE BOTTOM 979 00:50:01,960 --> 00:50:02,627 THERE'S A LINK ABOUT INFORMATION 980 00:50:02,627 --> 00:50:08,834 ABOUT THE ANNOUNCEMENT. 981 00:50:08,834 --> 00:50:11,036 AND FINALLY THE RARE DISEASE 982 00:50:11,036 --> 00:50:12,504 CLINICAL RESEARCH NETWORKS. 983 00:50:12,504 --> 00:50:18,043 THE RDCRN PROGRAM -- AND I 984 00:50:18,043 --> 00:50:20,579 SHOULD SAY UP FRONT THE PROGRAM 985 00:50:20,579 --> 00:50:24,149 IS LED BY THE NATIONAL CENTER 986 00:50:24,149 --> 00:50:26,518 FOR TRANSLATING SCIENCES. 987 00:50:26,518 --> 00:50:28,120 THE PROGRAM IS TO ADVANCE 988 00:50:28,120 --> 00:50:29,387 MEDICAL RESEARCH ON RARE 989 00:50:29,387 --> 00:50:30,222 DISEASES BY PROVIDING SUPPORT 990 00:50:30,222 --> 00:50:32,958 FOR CLINICAL STUDIES AND 991 00:50:32,958 --> 00:50:34,092 FACILITATING COLLABORATION, 992 00:50:34,092 --> 00:50:34,893 STUDY ENROLLMENT AND DATA 993 00:50:34,893 --> 00:50:37,395 SHARING. 994 00:50:37,395 --> 00:50:41,500 THROUGH A NETWORK OF CONSORTIA 995 00:50:41,500 --> 00:50:45,337 SCIENTISTS FROM MULTIPLE D 996 00:50:45,337 --> 00:50:46,071 DISPLD 997 00:50:46,071 --> 00:50:50,876 DISPLINSES -- DISCIPLINES TO 998 00:50:50,876 --> 00:50:54,546 STUDY MORE THAN 180 RARE 999 00:50:54,546 --> 00:50:54,813 DISEASES. 1000 00:50:54,813 --> 00:50:57,916 THE CURRENT GROUP INCLUDE 20 1001 00:50:57,916 --> 00:51:00,318 ACTIVE CONSORTIA WORKING ON 1002 00:51:00,318 --> 00:51:03,188 MULTI-SITE LONGITUDINAL STUDIES 1003 00:51:03,188 --> 00:51:05,657 AND PROJECT TO ADVANCE TREATMENT 1004 00:51:05,657 --> 00:51:10,896 FOR RARE DISEASES INCLUDING A 1005 00:51:10,896 --> 00:51:12,697 SYNDROME ASSOCIATED WITH AUTISM, 1006 00:51:12,697 --> 00:51:13,732 McDERMOTT SYNDROME. 1007 00:51:13,732 --> 00:51:14,933 YOU CAN SEE A LITTLE BIT OF 1008 00:51:14,933 --> 00:51:15,467 INFORMATION. 1009 00:51:15,467 --> 00:51:19,805 THESE ARE SUPPORTED ACROSS 1010 00:51:19,805 --> 00:51:21,473 MULTIPLE INSTITUTES INCLUDING N 1011 00:51:21,473 --> 00:51:25,343 OF NCATS AND NIMH AND NINDS AND 1012 00:51:25,343 --> 00:51:28,180 THERE'S A LINK TO GET ADDITIONAL 1013 00:51:28,180 --> 00:51:34,886 INFORMATION ABOUT THE CENTER -- 1014 00:51:34,886 --> 00:51:41,426 PHELAN-McDERMID SYNDROME. 1015 00:51:41,426 --> 00:51:46,565 SUSAN: NEXT WE'LL HEAR FROM 1016 00:51:46,565 --> 00:51:48,967 SCOTT ROBERTSON. 1017 00:51:48,967 --> 00:51:52,037 >> THANK YOU, DR. DANIELS. 1018 00:51:52,037 --> 00:51:55,140 I'M DR. SCOTT MICHAEL ROBERTSON 1019 00:51:55,140 --> 00:51:58,210 AN AUTISTIC WHITE MAN WITH BLUE 1020 00:51:58,210 --> 00:52:01,913 EYES AND WEARING GLASSES AND A 1021 00:52:01,913 --> 00:52:04,115 RED SHIRT AND DARK JACKET I 1022 00:52:04,115 --> 00:52:07,953 THINK NAVY AND OFFICE OF 1023 00:52:07,953 --> 00:52:08,787 DISABILITY EMPLOYMENT POLICY 1024 00:52:08,787 --> 00:52:09,988 BACKGROUND BEHIND ME AT THE 1025 00:52:09,988 --> 00:52:10,689 DEPARTMENT OF LABOR. 1026 00:52:10,689 --> 00:52:12,691 WE'RE AN AGENCY THAT FOCUSES ON 1027 00:52:12,691 --> 00:52:14,459 INCREASING ACCESS TO EMPLOYMENT 1028 00:52:14,459 --> 00:52:18,430 AND CAREER PATHWAYS FOR DIVERSE 1029 00:52:18,430 --> 00:52:19,497 PEOPLE WITH DISABILITIES. 1030 00:52:19,497 --> 00:52:20,899 OUR MISSION SPECIFICALLY FOCUSES 1031 00:52:20,899 --> 00:52:24,135 ON ACTIVITIES TO DEVELOP AND 1032 00:52:24,135 --> 00:52:25,737 INFLUENCE POLICIES AND PRACTICES 1033 00:52:25,737 --> 00:52:27,906 THAT CAN INCREASE THE NUMBER AND 1034 00:52:27,906 --> 00:52:28,907 QUALITY OF EMPLOYMENT 1035 00:52:28,907 --> 00:52:31,276 OPPORTUNITIES FOR PEOPLE WITH 1036 00:52:31,276 --> 00:52:31,610 DISABILITIES. 1037 00:52:31,610 --> 00:52:34,913 AGAIN FROM DIVERSE BACKGROUNDS, 1038 00:52:34,913 --> 00:52:37,115 DIVERSE DISABILITY EXPERIENCES, 1039 00:52:37,115 --> 00:52:39,184 ALL TYPES OF DISABILITIES. 1040 00:52:39,184 --> 00:52:43,121 WE PLACE EMPHASIS EN OUR WORK 1041 00:52:43,121 --> 00:52:45,523 AND FOCUS ON OTHER AREAS OF 1042 00:52:45,523 --> 00:52:48,059 DISABILITY SUCH AS SUPPORT FOR 1043 00:52:48,059 --> 00:52:50,962 EMPOWERMENT OF NEURODIVERGENT 1044 00:52:50,962 --> 00:52:52,530 PEOPLE AND FOSTERING 1045 00:52:52,530 --> 00:52:53,665 NEURODIVERSITY AT WORK AND 1046 00:52:53,665 --> 00:52:57,569 FOSTER AND ALIGNING UNDER 1047 00:52:57,569 --> 00:52:58,470 PRIORITIES UNDER THE AUTISM 1048 00:52:58,470 --> 00:53:01,039 CARES ACT AND SUPPORTING OTHER 1049 00:53:01,039 --> 00:53:02,407 AGENCIES IN REGARD TO IMPROVING 1050 00:53:02,407 --> 00:53:03,108 ACCESS TO EMPLOYMENT IN 1051 00:53:03,108 --> 00:53:09,180 GOVERNMENT AND IN INDUSTRY. 1052 00:53:09,180 --> 00:53:11,416 SO OUR PORTFOLIO EMPHASIS IS ON 1053 00:53:11,416 --> 00:53:12,117 EMPLOYMENT AND CAREERS 1054 00:53:12,117 --> 00:53:14,185 SPECIFICALLY COMPETITIVE 1055 00:53:14,185 --> 00:53:16,221 INTEGRATED EMPLOYMENT ACCESS FOR 1056 00:53:16,221 --> 00:53:17,389 PEOPLE WITH DISABILITIES. 1057 00:53:17,389 --> 00:53:20,125 CAREER PATHWAYS AND CURRENTLY 1058 00:53:20,125 --> 00:53:21,359 THE FEDERAL GOOD JOBS INITIATIVE 1059 00:53:21,359 --> 00:53:22,327 ACROSS THE FEDERAL GOVERNMENT 1060 00:53:22,327 --> 00:53:24,162 THE DEPARTMENT OF LABOR IS 1061 00:53:24,162 --> 00:53:26,798 TAKING A LEAD ON. 1062 00:53:26,798 --> 00:53:29,067 AND DRIVING GREATER SUPPORT FOR 1063 00:53:29,067 --> 00:53:33,872 DIVERSITY, EQUITY, INCLUSION AND 1064 00:53:33,872 --> 00:53:36,574 ACCESSIBILITY OR DEIA PRIORITIES 1065 00:53:36,574 --> 00:53:38,076 UNDER FEDERAL EXECUTIVE ORDER 1066 00:53:38,076 --> 00:53:39,377 AND ONLY KEY EXECUTIVE POLICIES 1067 00:53:39,377 --> 00:53:40,712 AND PRACTICES. 1068 00:53:40,712 --> 00:53:44,115 AT THE BOTTOM OF THE SLIDE I 1069 00:53:44,115 --> 00:53:45,984 HAVE THE OFFICE OF DISABILITY 1070 00:53:45,984 --> 00:53:47,919 EMPLOYMENT POLICY LOGO AND NEXT 1071 00:53:47,919 --> 00:53:50,755 TO THAT IS THE RECENTLY 1072 00:53:50,755 --> 00:53:56,127 CELEBRATED 50th ANNIVERSARY FOR 1073 00:53:56,127 --> 00:54:00,131 THE REHABILITATION ACT OF 1973 1074 00:54:00,131 --> 00:54:04,135 WE CELEBRATED AND HAVE THE LOGO 1075 00:54:04,135 --> 00:54:08,473 FOR THAT. 1076 00:54:08,473 --> 00:54:11,376 I WANTED TO FOCUS ON OUR WORK. 1077 00:54:11,376 --> 00:54:13,545 WE DO A LOT OF OTHER WORK AS 1078 00:54:13,545 --> 00:54:18,049 WELL YOU COULD FIND THAT ON OUR 1079 00:54:18,049 --> 00:54:19,584 WEBSITE, BUT I WANTED TO 1080 00:54:19,584 --> 00:54:22,387 CONCENTRATE ON THE AWESOME WORK 1081 00:54:22,387 --> 00:54:23,521 JUST TODAY. 1082 00:54:23,521 --> 00:54:25,623 OUR MAIN WORK IS OUR RESEARCH 1083 00:54:25,623 --> 00:54:28,893 PROJECT THAT IS CALLED THE 1084 00:54:28,893 --> 00:54:29,694 RESEARCH SUPPORT RESOURCE FOR 1085 00:54:29,694 --> 00:54:31,830 EMPLOYMENT OF YOUNG ADULTS ON 1086 00:54:31,830 --> 00:54:38,636 THE AUTISM SPECTRUM. 1087 00:54:38,636 --> 00:54:43,041 WE OFTEN ABBREVIATE AND WE FOCUS 1088 00:54:43,041 --> 00:54:46,811 ON YOUNG ADULTS BECAUSE THAT'S 1089 00:54:46,811 --> 00:54:48,013 THE CHARGE FROM CONGRESS THAT 1090 00:54:48,013 --> 00:54:49,147 ASKED TO US DO THE PROJECT. 1091 00:54:49,147 --> 00:54:52,884 IT'S THE LARGEST INVESTMENT FROM 1092 00:54:52,884 --> 00:54:55,453 OUR AGENCY'S HISTORY IN MORE 1093 00:54:55,453 --> 00:55:03,094 THAN 20 YEARS AS AN AGENCY. 1094 00:55:03,094 --> 00:55:04,396 SPECIFICALLY IT WILL BE 23 YEARS 1095 00:55:04,396 --> 00:55:05,663 AS AN AGENCY. 1096 00:55:05,663 --> 00:55:08,867 THE GOAL IS TO INCREASE ACCESS 1097 00:55:08,867 --> 00:55:13,138 AND EXPAND ACCESS TO INCLUSIVE 1098 00:55:13,138 --> 00:55:16,908 EMPLOYMENT AND CAREER PATHS FOR 1099 00:55:16,908 --> 00:55:19,677 AUTISTIC YOUTH AND YOUNG ADULTS 1100 00:55:19,677 --> 00:55:21,613 AND HAVE INDICATIONS FOR WHAT 1101 00:55:21,613 --> 00:55:23,148 WORKS WELL FOR YOUTH YOUNG 1102 00:55:23,148 --> 00:55:25,250 ADULTS AND WORKS WELL FOR ALL 1103 00:55:25,250 --> 00:55:28,119 AUTISTIC PEOPLE AT ALL SPORTS OF 1104 00:55:28,119 --> 00:55:29,654 THE AGE RANGE. 1105 00:55:29,654 --> 00:55:33,391 THE FUNDING IS UNDER CONTRACT 1106 00:55:33,391 --> 00:55:37,662 WITH MATHEMATICA. 1107 00:55:37,662 --> 00:55:42,267 IT'S A $2.9 MILLION PROJECT TO 1108 00:55:42,267 --> 00:55:44,569 BE PRECISE LAUNCHED IN FISCAL 1109 00:55:44,569 --> 00:55:48,139 2021 AND IT'S BEEN ENGAGED IN 1110 00:55:48,139 --> 00:55:50,809 DATA ANALYSIS RUNNING LISTENING 1111 00:55:50,809 --> 00:55:52,110 SESSION WITH AUTISTIC YOUTH AND 1112 00:55:52,110 --> 00:55:57,882 YOUNG ADULTS AND WE HAD ABOUT 96 1113 00:55:57,882 --> 00:56:00,952 AUTISTIC YOUTH AND YOUNG ADULTS 1114 00:56:00,952 --> 00:56:02,654 AND LITERACY REVIEW AND OTHER 1115 00:56:02,654 --> 00:56:04,823 FORM OF DATA ANALYSIS. 1116 00:56:04,823 --> 00:56:07,659 WE'VE RELEASED MANY PROJECT 1117 00:56:07,659 --> 00:56:10,462 REPORTS FROM THIS PROJECT AND I 1118 00:56:10,462 --> 00:56:13,098 WANT TO THE HIGHLIGHT A FEW ON 1119 00:56:13,098 --> 00:56:14,165 PROGRAMS AND STRATEGIES AND 1120 00:56:14,165 --> 00:56:15,900 EVIDENCE ON THE EFFECTIVENESS OF 1121 00:56:15,900 --> 00:56:18,369 PROGRAM MODELS AND STRATEGIES. 1122 00:56:18,369 --> 00:56:19,938 BARRIERS TO FACILITATORS TO 1123 00:56:19,938 --> 00:56:21,139 EMPLOYMENT AND CAREERS. 1124 00:56:21,139 --> 00:56:24,075 THIS IS A REPORT THAT CAME FROM 1125 00:56:24,075 --> 00:56:26,077 OUR LISTENING SESSION AND THE 1126 00:56:26,077 --> 00:56:28,346 MOST RECENT REPORT ON VOCATIONAL 1127 00:56:28,346 --> 00:56:33,251 REHABILITATION SERVICES AND 1128 00:56:33,251 --> 00:56:33,718 OUTCOMES. 1129 00:56:33,718 --> 00:56:36,354 IT'S AN ANALYSIS DONE ON THE 1130 00:56:36,354 --> 00:56:37,922 V.R. SYSTEM AND THE YEARS 1131 00:56:37,922 --> 00:56:39,691 LEADING UP TO RIGHT BEFORE THE 1132 00:56:39,691 --> 00:56:49,901 COVID-19 PANDEMIC. 1133 00:56:49,901 --> 00:56:51,369 IT'S IN THE PLANNING ELEMENT 1134 00:56:51,369 --> 00:56:52,470 STAGE AND I'LL BE ABLE TO SHARE 1135 00:56:52,470 --> 00:56:55,406 MORE SPECIFICS DOWN THE LINE BUT 1136 00:56:55,406 --> 00:56:59,644 THIS IS GOING TO BE AN ACTIVITY 1137 00:56:59,644 --> 00:57:01,212 LOOKING AT SURVEYING YOUNG 1138 00:57:01,212 --> 00:57:02,780 ADULTS ABOUT EXPERIENCES AND 1139 00:57:02,780 --> 00:57:06,451 PERSPECTIVES FROM EMPLOYMENT AND 1140 00:57:06,451 --> 00:57:08,119 CAREERS AND BARRIERS IN 1141 00:57:08,119 --> 00:57:08,820 EXPERIENCE. 1142 00:57:08,820 --> 00:57:13,191 THE POINT OF CONTRACT IS DAVID 1143 00:57:13,191 --> 00:57:16,361 ROSENBLUM OUR FEDERAL PROJECTS 1144 00:57:16,361 --> 00:57:19,931 MANAGER FOR THIS PROJECT AND I'M 1145 00:57:19,931 --> 00:57:22,934 A SUBJECT MATTER EXPERT FOR 1146 00:57:22,934 --> 00:57:25,170 NEURODIVERSITY AT WORK HELPING 1147 00:57:25,170 --> 00:57:27,605 ASSIST ACTIVITIES SINCE IT 1148 00:57:27,605 --> 00:57:31,543 LAUNCHED IN FY2021. 1149 00:57:31,543 --> 00:57:34,345 THERE ARE LINKS TO ALL THE 1150 00:57:34,345 --> 00:57:40,485 REPORTS YOU CAN SEE LATER ON. 1151 00:57:40,485 --> 00:57:44,355 I'D LIKE TO SHARE NEURODIVERSITY 1152 00:57:44,355 --> 00:57:46,758 WORK WE HAVE. 1153 00:57:46,758 --> 00:57:52,797 AT DOL/DEPP WE HAVE EARN FOR 1154 00:57:52,797 --> 00:57:54,666 SHORT THE EMPLOYER ASSISTANCE 1155 00:57:54,666 --> 00:57:56,134 AND RESOURCE NETWORK DISABILITY 1156 00:57:56,134 --> 00:57:57,702 INCLUSION AND THIS HAS RELEASED 1157 00:57:57,702 --> 00:57:59,470 A NEURODIVERSITY IN THE 1158 00:57:59,470 --> 00:58:00,638 WORKPLACE GUIDE AS WELL AS A 1159 00:58:00,638 --> 00:58:03,575 TOOL KIT FOR SUPPORTING 1160 00:58:03,575 --> 00:58:05,577 WORKPLACE MENTAL HEALTH AND HAD 1161 00:58:05,577 --> 00:58:07,779 HOSTED A WEBINAR PREVIOUSLY ON 1162 00:58:07,779 --> 00:58:10,448 HIRING AND SUPPORTING 1163 00:58:10,448 --> 00:58:11,316 NEURODIVERGENT WORKERS AND 1164 00:58:11,316 --> 00:58:12,517 STRATEGIES FOR SUCCESS AND IT'S 1165 00:58:12,517 --> 00:58:14,452 ARCHIVED ONLINE AND YOU'LL SEE 1166 00:58:14,452 --> 00:58:16,154 IN THE ROUND ROBIN NOTES WE HAVE 1167 00:58:16,154 --> 00:58:19,824 A COUPLE SESSIONS THAT WERE 1168 00:58:19,824 --> 00:58:21,559 RECORDED AND POSTED ONLINE 1169 00:58:21,559 --> 00:58:24,262 RECENTLY I CAN MENTION IN THE 1170 00:58:24,262 --> 00:58:26,231 ROUND ROBIN SESSION RELATED TO 1171 00:58:26,231 --> 00:58:27,599 NEURODIVERSITY AT WORK AND 1172 00:58:27,599 --> 00:58:30,435 MENTAL HEALTH AND OUR JOB 1173 00:58:30,435 --> 00:58:32,036 ACCOMMODATIONS AT WORK WHICH IS 1174 00:58:32,036 --> 00:58:34,939 ANOTHER TECHNICAL ASSISTANCE 1175 00:58:34,939 --> 00:58:39,344 CENTER FUNDED HAS A WEB PAGE AND 1176 00:58:39,344 --> 00:58:41,980 HAS PREVIOUSLY HOSTED A WEBINAR 1177 00:58:41,980 --> 00:58:43,748 ON ACCOMMODATION SOLUTION FOR 1178 00:58:43,748 --> 00:58:44,916 NEURODIVERGENT WORKERS. 1179 00:58:44,916 --> 00:58:46,584 AS NOTED IN THE RED ROBIN WE 1180 00:58:46,584 --> 00:58:48,119 HAVE ANOTHER WEBINAR COMING UP 1181 00:58:48,119 --> 00:58:48,753 IN THE SPACE. 1182 00:58:48,753 --> 00:58:52,123 IT HAS SPECIFIC WEB PAGES FOR 1183 00:58:52,123 --> 00:58:55,960 ACCOMMODATIONS IN THE WORKPLACE 1184 00:58:55,960 --> 00:58:56,761 FOR INTELLECTUAL DISABILITY, 1185 00:58:56,761 --> 00:58:58,997 MANY OTHER DISABILITIES IN THE A 1186 00:58:58,997 --> 00:59:01,899 TO Z LIBRARY FOR WORKFORCE 1187 00:59:01,899 --> 00:59:04,068 ACCOMMODATIONS AND STAFF ARE 1188 00:59:04,068 --> 00:59:06,537 LABEL TO PROVIDE FREE EXPERT AND 1189 00:59:06,537 --> 00:59:08,139 CONFIDENTIAL ASSISTANCE ON WORK 1190 00:59:08,139 --> 00:59:10,308 ACCOMMODATIONS AND SUPPORTS. 1191 00:59:10,308 --> 00:59:12,410 THEY HAVE TEAMS FOR SPECIFIC 1192 00:59:12,410 --> 00:59:14,279 TYPES OF DISABILITIES INCLUDING 1193 00:59:14,279 --> 00:59:15,647 FOR INSTANCE A COGNITIVE AND 1194 00:59:15,647 --> 00:59:18,149 NEUROLOGICAL TEAM AND THIS IS 1195 00:59:18,149 --> 00:59:19,917 ALL FREE EXPERT CONFIDENTIAL 1196 00:59:19,917 --> 00:59:21,352 ASSISTANCE, YOUR TAXPAYER 1197 00:59:21,352 --> 00:59:24,055 DOLLARS AT WORK AND ANYONE CAN 1198 00:59:24,055 --> 00:59:26,024 CONNECT WITH JAN INCLUDING JOB 1199 00:59:26,024 --> 00:59:31,396 SEEKERS, WORKERS WITH EMPLOYERS, 1200 00:59:31,396 --> 00:59:34,299 FAMILY MEMBERS, ANYONE 1201 00:59:34,299 --> 00:59:35,800 INTERESTED IN LEARNING DIFFERENT 1202 00:59:35,800 --> 00:59:37,035 IDEAS FOR ADDRESSING BARRIERS 1203 00:59:37,035 --> 00:59:39,270 THROUGH WORK ACCOMMODATIONS AND 1204 00:59:39,270 --> 00:59:40,738 SUPPORTS IN SERVICES ESPECIALLY 1205 00:59:40,738 --> 00:59:44,108 THOSE INLINE WITH THE AMERICANS 1206 00:59:44,108 --> 00:59:46,611 WITH DISABILITIES ACT AND THE 1207 00:59:46,611 --> 00:59:48,880 REHABILITATION ACT OF 1973. 1208 00:59:48,880 --> 00:59:49,280 THAT'S IT FOR US. 1209 00:59:49,280 --> 00:59:54,819 THANK YOU. 1210 00:59:54,819 --> 01:00:05,063 >> THANK YOU. 1211 01:00:18,776 --> 01:00:21,779 SUSAN: NEXT IS JENNIFER JOHNSON. 1212 01:00:21,779 --> 01:00:32,190 ARE YOU ABLE TO ACCESS? 1213 01:00:45,636 --> 01:00:50,375 WE'LL COME BACK TO JENNIFER AND 1214 01:00:50,375 --> 01:01:00,551 I'LL SKIP AHEAD TO LEAH LOZIER. 1215 01:01:00,551 --> 01:01:02,987 LEAH: I'M IN OFFICE OF POLICY 1216 01:01:02,987 --> 01:01:03,788 DEVELOPMENT AND RESEARCH FOR 1217 01:01:03,788 --> 01:01:05,556 SUCH DEPARTMENT OF HOUSING AND 1218 01:01:05,556 --> 01:01:09,193 URBAN DEVELOPMENT AND I'M A FIWA 1219 01:01:09,193 --> 01:01:10,094 MEMBER. 1220 01:01:10,094 --> 01:01:12,997 HUD'S MISSION IS TO CREATE 1221 01:01:12,997 --> 01:01:16,134 STRONG, SUSTAINABLE COMMUNITIES 1222 01:01:16,134 --> 01:01:18,169 AND AFFORDABLE HOLDS FOR ALL AND 1223 01:01:18,169 --> 01:01:23,141 PROTECT CONSUMERS, MEET THE NEED 1224 01:01:23,141 --> 01:01:25,777 FOR QUALITY AFFORDABLE RENTAL 1225 01:01:25,777 --> 01:01:28,112 HOME AND BUILD INCLUSIVE 1226 01:01:28,112 --> 01:01:29,881 COMMUNITIES FREE FROM 1227 01:01:29,881 --> 01:01:31,082 DISCRIMINATION AND TRANSFORM THE 1228 01:01:31,082 --> 01:01:32,884 WAY HUD DOES BUSINESS. 1229 01:01:32,884 --> 01:01:34,585 HUD DOES NOT HAVE AUTISM 1230 01:01:34,585 --> 01:01:35,653 SPECIFIC PROGRAMS BUT DOES SERVE 1231 01:01:35,653 --> 01:01:36,921 PERSONS WITH DISABILITIES 1232 01:01:36,921 --> 01:01:39,290 THROUGH ALL OF ITS HOUSING 1233 01:01:39,290 --> 01:01:40,091 PROGRAMS INCLUDING PROGRAMS 1234 01:01:40,091 --> 01:01:42,560 SPECIFICALLY FOR THOSE WITH 1235 01:01:42,560 --> 01:01:44,128 DISABILITIES. 1236 01:01:44,128 --> 01:01:46,764 AMONG THE 4.6 MILLION HOUSEHOLDS 1237 01:01:46,764 --> 01:01:49,167 HUD SERVED THROUGH THE RENTAL 1238 01:01:49,167 --> 01:01:51,903 ASSISTANCE PROGRAMS, 34% WERE 1239 01:01:51,903 --> 01:01:53,905 HELD BY NON-ELDERLY PERSON WITH 1240 01:01:53,905 --> 01:01:57,442 DISABILITY INCLUDING 30% IN OUR 1241 01:01:57,442 --> 01:01:59,010 PUBLIC HOUSING HOUSEHOLDS AND 1242 01:01:59,010 --> 01:02:00,378 35% OF VOUCHER HOUSEHOLDS. 1243 01:02:00,378 --> 01:02:03,080 WE'RE SERVING FOLKS IN ALL OF 1244 01:02:03,080 --> 01:02:03,414 OUR PROGRAMS. 1245 01:02:03,414 --> 01:02:06,684 THE FOCUS OF TODAY'S BRIEF 1246 01:02:06,684 --> 01:02:07,885 PRESENTATION I WANT TO HIGHLIGHT 1247 01:02:07,885 --> 01:02:09,287 FOUR PROGRAMS SPECIFICALLY FOR 1248 01:02:09,287 --> 01:02:16,093 PERSONS WITH DISABILITIES. 1249 01:02:16,093 --> 01:02:18,896 THE FIRST IS THE SECTION 811 1250 01:02:18,896 --> 01:02:20,465 SUPPORTIVE HOUSING PROGRAM AS 1251 01:02:20,465 --> 01:02:22,900 THE TRADITIONAL PROGRAM. 1252 01:02:22,900 --> 01:02:25,169 THIS PROGRAM PROVIDES 1253 01:02:25,169 --> 01:02:27,305 INTEREST-FREE CAPITAL 1254 01:02:27,305 --> 01:02:32,210 INVESTMENTS FUNDING TO BUILT AND 1255 01:02:32,210 --> 01:02:34,946 NON-PROFIT DEVELOPERS SUBSIDIES 1256 01:02:34,946 --> 01:02:37,415 AND AVAILABLE FOR LOW-INCOME 1257 01:02:37,415 --> 01:02:39,283 HOUSEHOLDS WITH AN INCOME OF 1258 01:02:39,283 --> 01:02:43,087 LESS THAN 50% OF THE MEDIAN 1259 01:02:43,087 --> 01:02:43,554 INCOME. 1260 01:02:43,554 --> 01:02:46,724 THERE'S A SECTION 811PRA, 1261 01:02:46,724 --> 01:02:47,992 PROJECT RENTAL ASSISTANCE 1262 01:02:47,992 --> 01:02:48,226 PROGRAM. 1263 01:02:48,226 --> 01:02:51,896 THE KEY DIFFERENCE IS INTEGRATED 1264 01:02:51,896 --> 01:02:52,096 UNITS. 1265 01:02:52,096 --> 01:02:53,364 UNDER THIS PROGRAM STATE HOUSING 1266 01:02:53,364 --> 01:02:55,700 AGENCIES THAT HAVE ENTERED INTO 1267 01:02:55,700 --> 01:02:56,901 A PARTNERSHIP WITH STATE 1268 01:02:56,901 --> 01:02:58,469 MEDICAID AND HEALTH AND HUMAN 1269 01:02:58,469 --> 01:03:01,172 SERVICES AGENCIES CAN APPLY FOR 1270 01:03:01,172 --> 01:03:02,940 GRANTS AT SUBSIDIZED RENT FOR 1271 01:03:02,940 --> 01:03:04,008 PEOPLE WITH DISABILITIES IN 1272 01:03:04,008 --> 01:03:06,110 AFFORDABLE HOUSING DEVELOPMENTS. 1273 01:03:06,110 --> 01:03:08,446 THE PROGRAM SUBSIDIZES UP TO 25% 1274 01:03:08,446 --> 01:03:10,181 OF UNITS IN A PROPERTY TO ENSURE 1275 01:03:10,181 --> 01:03:12,116 PEOPLE WITH DISABILITIES ARE 1276 01:03:12,116 --> 01:03:15,686 FULLY INTEGRATED INTO THE 1277 01:03:15,686 --> 01:03:16,254 COMMUNITY. 1278 01:03:16,254 --> 01:03:18,322 PARTICIPANTS MAH MUST HAVE 1279 01:03:18,322 --> 01:03:20,124 EXTREMELY LOW INCOME IN THIS 1280 01:03:20,124 --> 01:03:26,931 PROGRAM WHICH IS AT OR BELOW OF 1281 01:03:26,931 --> 01:03:30,401 THE 30% MEDIAN INCOME AND MUST 1282 01:03:30,401 --> 01:03:31,669 BE ELIGIBLE FOR MEDICAID OR 1283 01:03:31,669 --> 01:03:36,507 OTHER HEALTH AND HUMAN SERVICES. 1284 01:03:36,507 --> 01:03:39,010 SO TWO OTHER SMALLER AND LESSER 1285 01:03:39,010 --> 01:03:41,445 KNOWN PROGRAMS ARE MAINSTREAM 1286 01:03:41,445 --> 01:03:43,347 VOUCHERS AND NED VOUCHERS, NED 1287 01:03:43,347 --> 01:03:46,083 STANDS FOR NON-ELDERLY DISABLED. 1288 01:03:46,083 --> 01:03:48,986 VOUCHERS ARE A RENTAL ASSISTANCE 1289 01:03:48,986 --> 01:03:52,857 THAT ENABLES A HOUSEHOLD TO RENT 1290 01:03:52,857 --> 01:03:54,058 IN THE PRIVATE MARKET AND PAY 1291 01:03:54,058 --> 01:03:56,093 30% OF THEIR INCOMING RENT. 1292 01:03:56,093 --> 01:04:02,199 FOR MAINSTREAM VOUCHERS THIS IS 1293 01:04:02,199 --> 01:04:03,267 RENTAL ASSISTANCE FOR 1294 01:04:03,267 --> 01:04:04,635 NON-ELDERLY PEOPLE WITH 1295 01:04:04,635 --> 01:04:05,636 DISABILITIES AND IN THIS PROGRAM 1296 01:04:05,636 --> 01:04:07,204 ONE ADULT MEMBER OF THE 1297 01:04:07,204 --> 01:04:08,105 HOUSEHOLD MUST HAVE A 1298 01:04:08,105 --> 01:04:11,742 DISABILITY. 1299 01:04:11,742 --> 01:04:13,711 AS NOR NED VOUCHERS THIS IS ALSO 1300 01:04:13,711 --> 01:04:16,047 RENTAL ASSISTANCE FOR 1301 01:04:16,047 --> 01:04:17,081 NON-ELDERLY PEOPLE WITH 1302 01:04:17,081 --> 01:04:18,282 DISABILITY BUT THE KEY 1303 01:04:18,282 --> 01:04:19,016 DIFFERENCE IS THE HEAD OF 1304 01:04:19,016 --> 01:04:20,585 HOUSEHOLD MUST HAVE A 1305 01:04:20,585 --> 01:04:20,885 DISABILITY. 1306 01:04:20,885 --> 01:04:22,386 THIS COMES IN ESSENTIALLY TWO 1307 01:04:22,386 --> 01:04:22,687 CATEGORIES. 1308 01:04:22,687 --> 01:04:24,322 THE FIRST IS FOR NON-ELDERLY 1309 01:04:24,322 --> 01:04:26,390 PEOPLE WITH DISABILITIES TO 1310 01:04:26,390 --> 01:04:28,059 ACCESS AFFORDABLE HOUSING IN A 1311 01:04:28,059 --> 01:04:29,360 RENTAL MARKET SIMILAR TO OUR 1312 01:04:29,360 --> 01:04:31,329 VOUCHER PROGRAM AND THE SECOND 1313 01:04:31,329 --> 01:04:33,064 ONE THE KEY DIFFERENCE IS THIS 1314 01:04:33,064 --> 01:04:34,966 IS FOR PEOPLE WITH DISABILITIES 1315 01:04:34,966 --> 01:04:36,767 TRANSITIONING FROM NURSING HOMES 1316 01:04:36,767 --> 01:04:37,702 AND OTHER HEALTH CARE 1317 01:04:37,702 --> 01:04:40,137 INSTITUTIONS BACK INTO THE 1318 01:04:40,137 --> 01:04:44,241 COMMUNITY. 1319 01:04:44,241 --> 01:04:46,978 THAT'S IT FOR ME. 1320 01:04:46,978 --> 01:04:47,645 THANK YOU. 1321 01:04:47,645 --> 01:04:53,184 >> THANK YOU, DR. LOZIER. 1322 01:04:53,184 --> 01:05:03,694 NEXT IS ALISON MARVIN, SOCIAL 1323 01:05:05,296 --> 01:05:05,730 SECURITY ADMINISTRATION. 1324 01:05:05,730 --> 01:05:07,865 >> GOOD MORNING. 1325 01:05:07,865 --> 01:05:14,338 I'M ALLISON MARVIN, SOCIAL 1326 01:05:14,338 --> 01:05:15,239 SECURITY ADMINISTRATION AND 1327 01:05:15,239 --> 01:05:17,408 STATISTICIAN IN THE CENTER OF 1328 01:05:17,408 --> 01:05:18,676 EXCELLENCE AT THE SOCIAL 1329 01:05:18,676 --> 01:05:20,111 SECURITY ADMINISTRATION AND I'M 1330 01:05:20,111 --> 01:05:26,384 BOTH AT FIWA AND IACC MEMBER AND 1331 01:05:26,384 --> 01:05:28,986 WE DO NOT HAVE AUTISM SPECIFIC 1332 01:05:28,986 --> 01:05:30,388 PROGRAMS BUT OUR PROGRAMS DO 1333 01:05:30,388 --> 01:05:32,123 SERVE THOSE ON THE AUTISM 1334 01:05:32,123 --> 01:05:38,129 SPECTRUM. 1335 01:05:38,129 --> 01:05:41,098 WE HAVE TWO DISABILITY PROGRAMS. 1336 01:05:41,098 --> 01:05:45,603 ONE IS SSDI WHICH PAYS BENEFITS 1337 01:05:45,603 --> 01:05:47,605 TO ENSURED DISABLED INDIVIDUALS 1338 01:05:47,605 --> 01:05:49,640 AND CERTAIN FAMILY MEMBERS. 1339 01:05:49,640 --> 01:05:52,109 WHEN WE SAY INSURED THAT'S WHEN 1340 01:05:52,109 --> 01:05:54,612 PEOPLE PAY IN FROM THE PAYROLL 1341 01:05:54,612 --> 01:05:55,680 AND PAYCHECK AND PART OF THAT 1342 01:05:55,680 --> 01:05:59,950 GOES TOWARDS THAT AND WE HAVE 1343 01:05:59,950 --> 01:06:01,252 SSI SUPPLEMENTAL SECURITY INCOME 1344 01:06:01,252 --> 01:06:03,487 FOR THOSE WITH LIMITED INCOME 1345 01:06:03,487 --> 01:06:04,722 AND RESOURCES FUNDED BY THE 1346 01:06:04,722 --> 01:06:08,893 GENERAL TAX REVENUES. 1347 01:06:08,893 --> 01:06:12,129 I'M GOING TO TOUCH ON THREE 1348 01:06:12,129 --> 01:06:15,266 AREAS WHERE SSA HELP IN ADDITION 1349 01:06:15,266 --> 01:06:17,968 TO HAVING THE SUPPORT PROGRAMS. 1350 01:06:17,968 --> 01:06:20,571 ONE IS EMPLOYMENT SUPPORT WHERE 1351 01:06:20,571 --> 01:06:23,708 WE HAD POLICIES IN PLACE TO HELP 1352 01:06:23,708 --> 01:06:25,543 OUR BENEFICIARIES RETURN TO WORK 1353 01:06:25,543 --> 01:06:28,112 BY PROTECTING THEIR CASH AND 1354 01:06:28,112 --> 01:06:30,081 MEDICAL BENEFITS AND THE FEAR OF 1355 01:06:30,081 --> 01:06:32,450 LOSING MEDICAL BENEFITS IS A 1356 01:06:32,450 --> 01:06:34,652 MAJOR CONCERN AND OFTEN PREVENTS 1357 01:06:34,652 --> 01:06:36,721 PEOPLE FROM TRYING TO STEP BACK 1358 01:06:36,721 --> 01:06:38,789 IN THE WORK WORLD. 1359 01:06:38,789 --> 01:06:40,958 AND WE ALSO HAVE EMPLOYMENT 1360 01:06:40,958 --> 01:06:44,128 SERVICES, NOTABLY OUR TICKET TO 1361 01:06:44,128 --> 01:06:46,397 WORK PROGRAM AND THESE ARE 1362 01:06:46,397 --> 01:06:52,970 PROGRAMS WHICH HELP BEN -- 1363 01:06:52,970 --> 01:06:55,172 BENEFICIARIES TO RETURN TO WORK 1364 01:06:55,172 --> 01:06:56,373 AND CAN TAKE INDIVIDUALS WITH 1365 01:06:56,373 --> 01:06:56,907 EMPLOYMENT SERVICES, FOR 1366 01:06:56,907 --> 01:07:02,146 EXAMPLE. 1367 01:07:02,146 --> 01:07:04,115 THE SECOND AREA IS OUR RESEARCH 1368 01:07:04,115 --> 01:07:05,616 AND DEMONSTRATIONS. 1369 01:07:05,616 --> 01:07:08,486 SO AS I'VE NOTED HERE, 1370 01:07:08,486 --> 01:07:09,954 DEMONSTRATIONS, THE TEMPORARY 1371 01:07:09,954 --> 01:07:10,955 INITIATIVES TO IDENTIFY SERVICES 1372 01:07:10,955 --> 01:07:12,523 AND SUPPORTS AND POLICIES TO 1373 01:07:12,523 --> 01:07:18,929 SUPPORT PEOPLE WITH 1374 01:07:18,929 --> 01:07:19,263 DISABILITIES. 1375 01:07:19,263 --> 01:07:20,765 WE TRY AND SEE WHAT WORKS AND 1376 01:07:20,765 --> 01:07:24,168 SEE WHAT LESSONS WE LEARN AND 1377 01:07:24,168 --> 01:07:26,704 YOU CAN ALSO TRY TO SEE WHAT 1378 01:07:26,704 --> 01:07:27,738 LESSONS WE'VE LEARNED IF YOU SEE 1379 01:07:27,738 --> 01:07:29,373 THE FIRST BULLET. 1380 01:07:29,373 --> 01:07:31,308 THIS IS A LINK TO OUR STATE OF 1381 01:07:31,308 --> 01:07:33,010 THE SCIENCE MEETING AND LESSONS 1382 01:07:33,010 --> 01:07:34,445 LEARN FROM PAST DEMONSTRATIONS. 1383 01:07:34,445 --> 01:07:36,113 THIS IS A REALLY INTERESTING 1384 01:07:36,113 --> 01:07:38,048 SITE AND YOU CAN DOWNLOAD FOR 1385 01:07:38,048 --> 01:07:40,317 FREE THE BOOK AND PDF FORM WHICH 1386 01:07:40,317 --> 01:07:42,486 CONTAINS ALL THE PRESENTATIONS 1387 01:07:42,486 --> 01:07:45,756 AT THAT MEETING AND YOU CAN 1388 01:07:45,756 --> 01:07:47,024 LEARN A LOT ABOUT THE 1389 01:07:47,024 --> 01:07:48,125 DEMONSTRATIONS AND LEARN ABOUT 1390 01:07:48,125 --> 01:07:50,828 WHAT WE LEARNED FROM EXPLORING 1391 01:07:50,828 --> 01:07:52,463 WHAT WE'VE LEARNED IN THESE 1392 01:07:52,463 --> 01:07:52,830 DEMONSTRATIONS. 1393 01:07:52,830 --> 01:07:54,365 REALLY RECOMMEND THAT. 1394 01:07:54,365 --> 01:07:59,570 AND WE ALSO JUST COMPLETED OUR 1395 01:07:59,570 --> 01:08:00,037 SUPPORTED EMPLOYMENT 1396 01:08:00,037 --> 01:08:01,806 DEMONSTRATION PROJECT AND I 1397 01:08:01,806 --> 01:08:04,108 WROTE THAT UP IN THE LAST 1398 01:08:04,108 --> 01:08:05,609 MEETING ROUND ROBIN DOCUMENTS. 1399 01:08:05,609 --> 01:08:07,278 YOU CAN READ ALL ABOUT THAT 1400 01:08:07,278 --> 01:08:12,116 THERE AND OBVIOUSLY IN THE LINK 1401 01:08:12,116 --> 01:08:14,952 AND BE EVALUATED ON THE PROMISE 1402 01:08:14,952 --> 01:08:16,420 PROJECT AS WELL RECENTLY. 1403 01:08:16,420 --> 01:08:21,792 AND QUE -- WE HAVE LOTS OF 1404 01:08:21,792 --> 01:08:24,128 RESEARCH AND ANALYSIS AND 1405 01:08:24,128 --> 01:08:27,064 BULLETIN AND DATA SURVEYS AND 1406 01:08:27,064 --> 01:08:30,901 PEOPLE CAN USE THEIR OWN 1407 01:08:30,901 --> 01:08:34,405 STATISTICAL ANALYSES AND THE 1408 01:08:34,405 --> 01:08:35,506 PUBLIC USE FUNDS ARE CURRENTLY 1409 01:08:35,506 --> 01:08:37,308 AVAILABLE AND WE HAVE 1410 01:08:37,308 --> 01:08:37,708 STATISTICS. 1411 01:08:37,708 --> 01:08:41,679 WE HAVE STATISTICAL BOOKS WHICH 1412 01:08:41,679 --> 01:08:47,017 FOR EXAMPLE SSI AND SSDI AND 1413 01:08:47,017 --> 01:08:49,053 OFTEN BROKEN DOWN BY DIAGNOSIS 1414 01:08:49,053 --> 01:08:50,654 INCLUDING AUTISM AND YOU CAN GO 1415 01:08:50,654 --> 01:08:51,689 IN THERE AND THERE'S MOUNDS OF 1416 01:08:51,689 --> 01:08:54,058 DATA WHICH CAN BE DOWNLOADED IN 1417 01:08:54,058 --> 01:08:55,626 MULTIPLE FORMATS. 1418 01:08:55,626 --> 01:09:01,031 THAT'S ALL AVAILABLE FOR PEOPLE 1419 01:09:01,031 --> 01:09:03,567 TO USE. 1420 01:09:03,567 --> 01:09:06,537 I'M GOING TO MENTION RESEARCH 1421 01:09:06,537 --> 01:09:07,504 FUNDING OPPORTUNITIES. 1422 01:09:07,504 --> 01:09:12,476 WE HAVE THE ICAP INTERVENTIONAL 1423 01:09:12,476 --> 01:09:13,344 COOPERATIVE AGREEMENT PROGRAM. 1424 01:09:13,344 --> 01:09:16,480 THIS ALLOWS SSA -- IT'S A LEGAL 1425 01:09:16,480 --> 01:09:20,284 WAY TO ALLOW SSA TO PARTNER WITH 1426 01:09:20,284 --> 01:09:21,719 NON-FEDERAL GROUPS ON RESEARCH 1427 01:09:21,719 --> 01:09:26,523 RELATING TO SSA AND WE HAVE JUST 1428 01:09:26,523 --> 01:09:28,959 MADE AN ANNOUNCEMENT ABOUT THIS 1429 01:09:28,959 --> 01:09:32,897 AND YOU CAN READ ABOUT THOSE IN 1430 01:09:32,897 --> 01:09:34,632 OUR CURRENT ROUND ROBIN DOCUMENT 1431 01:09:34,632 --> 01:09:38,269 I WROTE UP AND YOU CAN SEE TWO 1432 01:09:38,269 --> 01:09:38,636 AWARDS. 1433 01:09:38,636 --> 01:09:42,773 ONE IS ON THE ABLE ACCOUNT 1434 01:09:42,773 --> 01:09:43,874 ACHIEVING A BETTER LIFE 1435 01:09:43,874 --> 01:09:45,276 EXPERIENCE ACCOUNT AND TAX 1436 01:09:45,276 --> 01:09:47,044 ACCOUNTS AND SAVINGS ACCOUNTS 1437 01:09:47,044 --> 01:09:48,145 FOR INDIVIDUALS AND THEIR 1438 01:09:48,145 --> 01:09:51,415 FAMILIES AND I PUSHED THEM IN 1439 01:09:51,415 --> 01:09:53,584 PREVIOUS MEETINGS BUT THERE'S A 1440 01:09:53,584 --> 01:09:57,221 SPECIFIC PROJECT RELATED TO 1441 01:09:57,221 --> 01:10:00,691 ENCOURAGING PEOPLE TO HAVE BE AN 1442 01:10:00,691 --> 01:10:03,727 UPDATE IN ACCOUNTS AND PART OF 1443 01:10:03,727 --> 01:10:05,362 THE DISABILITY CONSORTIUM THOSE 1444 01:10:05,362 --> 01:10:08,799 AGREEMENTS WERE ANNOUNCED IN 1445 01:10:08,799 --> 01:10:10,968 SEPTEMBER AND ANNOUNCED THEM IN 1446 01:10:10,968 --> 01:10:12,970 THE PREVIOUS MEETING AND READ 1447 01:10:12,970 --> 01:10:16,106 ABOUT THEM IN THE PREVIOUS ROUND 1448 01:10:16,106 --> 01:10:18,709 ROBIN DOCUMENT AND THERE'S A 1449 01:10:18,709 --> 01:10:20,844 PROGRAM FOR GRADUATE STUDENTS. 1450 01:10:20,844 --> 01:10:22,546 THIS WAS IN HIATUS WHILE WE 1451 01:10:22,546 --> 01:10:27,685 LOOKED FOR A NEW ADMINISTRATIVE 1452 01:10:27,685 --> 01:10:28,385 PARTNER. 1453 01:10:28,385 --> 01:10:34,058 WE HAVE STUDENTS SPECIFICALLY 1454 01:10:34,058 --> 01:10:36,126 COMPLETED PROJECTS ON AUTISM 1455 01:10:36,126 --> 01:10:40,097 THIS IS WHERE WE HAVE OUR AUTISM 1456 01:10:40,097 --> 01:10:42,132 SPECIFIC RESEARCH AND HAVE OUR 1457 01:10:42,132 --> 01:10:43,500 WONDERFUL AUTISM SPECIFIC 1458 01:10:43,500 --> 01:10:44,601 RESEARCH FROM THE GRADUATE 1459 01:10:44,601 --> 01:10:45,636 STUDENTS AND I WILL LET YOU KNOW 1460 01:10:45,636 --> 01:10:47,037 WHEN WE HAVE THE NEW AWARDS UP 1461 01:10:47,037 --> 01:10:51,909 AND READY TO GO. 1462 01:10:51,909 --> 01:10:54,411 WE'RE LOOKING FORWARD TO HAVE 1463 01:10:54,411 --> 01:10:55,612 NEW STUDENTS TO APPLY WHEN IT'S 1464 01:10:55,612 --> 01:10:58,615 UP AND RUNNING AGAIN. 1465 01:10:58,615 --> 01:10:59,984 THANK YOU SO MUCH AND THIS IS 1466 01:10:59,984 --> 01:11:04,121 FROM THE SOCIAL SECURITY 1467 01:11:04,121 --> 01:11:05,456 ADMINISTRATION. 1468 01:11:05,456 --> 01:11:07,891 >> THANK YOU, SO MUCH. 1469 01:11:07,891 --> 01:11:16,100 WE'LL GO BACK TO JENNIFER 1470 01:11:16,100 --> 01:11:20,104 JOHN 1471 01:11:20,104 --> 01:11:21,939 JOHNSON. 1472 01:11:21,939 --> 01:11:23,540 JENNIFER: CAN YOU HEAR ME? 1473 01:11:23,540 --> 01:11:26,076 I'M JENNIFER JOHNSON THE DEPUTY 1474 01:11:26,076 --> 01:11:28,012 COMMISSIONER FOR THE 1475 01:11:28,012 --> 01:11:28,812 ADMINISTRATION ON DISABILITIES 1476 01:11:28,812 --> 01:11:32,116 WHICH IS A CENTER WITHIN THE 1477 01:11:32,116 --> 01:11:34,051 ADMINISTRATION FOR COMMUNITY 1478 01:11:34,051 --> 01:11:34,318 LIVING. 1479 01:11:34,318 --> 01:11:36,120 FOR THOSE WHO AREN'T FAMILIAR 1480 01:11:36,120 --> 01:11:37,187 WITH THE ADMINISTRATION FOR 1481 01:11:37,187 --> 01:11:41,558 COMMUNITY LIVING OR ACL FOR 1482 01:11:41,558 --> 01:11:42,659 SHORT, WE ARE PART OF THE 1483 01:11:42,659 --> 01:11:44,094 U.S. DEPARTMENT OF HEALTH OR 1484 01:11:44,094 --> 01:11:46,997 HUMAN SERVICES OR HHS. 1485 01:11:46,997 --> 01:11:49,333 WE FUND DISABILITY IN 18 1486 01:11:49,333 --> 01:11:50,401 ORGANIZATIONS THAT HELP SUPPORT 1487 01:11:50,401 --> 01:11:52,136 PEOPLE WITH DISABILITIES AND 1488 01:11:52,136 --> 01:11:54,905 OLDER ADULTS TO LIVE, WORK AND 1489 01:11:54,905 --> 01:11:55,806 PARTICIPATE IN THEIR COMMUNITIES 1490 01:11:55,806 --> 01:11:59,043 AND ALSO PREVENT THEM FROM GOING 1491 01:11:59,043 --> 01:12:07,718 INTO INSTITUTIONS. 1492 01:12:07,718 --> 01:12:10,320 I WANT TO HIGHLIGHT SOME OF 1493 01:12:10,320 --> 01:12:11,889 ACL'S LEADING PRIORITIES. 1494 01:12:11,889 --> 01:12:12,923 FIRST TALKING ABOUT OUR WORK ON 1495 01:12:12,923 --> 01:12:14,858 EXPANDING HOME AND 1496 01:12:14,858 --> 01:12:17,561 COMMUNITY-BASED SERVICES OR HCBS 1497 01:12:17,561 --> 01:12:21,331 AND ADDRESSING THE INSTITUTIONAL 1498 01:12:21,331 --> 01:12:23,200 BIAS TO SUPPORT PEOPLE TO AGE IN 1499 01:12:23,200 --> 01:12:25,869 PLACE AND ALSO TO DIVERT PEOPLE 1500 01:12:25,869 --> 01:12:28,672 FROM GOING INTO INSTITUTIONAL 1501 01:12:28,672 --> 01:12:31,241 SETTINGS AS WELL AS SAFELY 1502 01:12:31,241 --> 01:12:33,444 TRANSITIONING THEM BACK INTO THE 1503 01:12:33,444 --> 01:12:35,145 COMMUNITY FROM INSTITUTIONAL 1504 01:12:35,145 --> 01:12:35,412 SETTINGS. 1505 01:12:35,412 --> 01:12:37,714 A BIG PART OF THAT WORK HAS BEEN 1506 01:12:37,714 --> 01:12:41,752 FOCUSSED ON WHAT WE CALL THE 1507 01:12:41,752 --> 01:12:43,954 HCBS SETTINGS RULE IN MARCH OF 1508 01:12:43,954 --> 01:12:45,722 THIS YEAR WILL BE ONE YEAR SINCE 1509 01:12:45,722 --> 01:12:48,425 THE END OF THE ADMINISTRATION TO 1510 01:12:48,425 --> 01:12:50,994 THE HCBS SETTINGS RULE. 1511 01:12:50,994 --> 01:12:53,097 WE'VE DONE A LOT OF WORK IN 1512 01:12:53,097 --> 01:12:58,102 COLLABORATION WITH CMS ON THE 1513 01:12:58,102 --> 01:12:59,203 IMPLEMENTATION DOING VISITS TO 1514 01:12:59,203 --> 01:13:00,104 THE IMPLEMENTATION OF THE 1515 01:13:00,104 --> 01:13:03,540 SETTINGS RULE. 1516 01:13:03,540 --> 01:13:05,976 NEXT I WANTED TO BRIEFLY 1517 01:13:05,976 --> 01:13:08,045 HIGHLIGHT THE WORK WE'RE DOING 1518 01:13:08,045 --> 01:13:09,346 ON SUPPORTING CAREGIVERS AND 1519 01:13:09,346 --> 01:13:10,047 BUILDING THE CARE GIVING 1520 01:13:10,047 --> 01:13:10,280 ECONOMY. 1521 01:13:10,280 --> 01:13:11,715 I THINK FOR MEMBERS OF THIS 1522 01:13:11,715 --> 01:13:16,019 TEAM, EVERYBODY IS FAMILIAR WITH 1523 01:13:16,019 --> 01:13:17,888 THE REAL CRISIS WE HAVE IN THE 1524 01:13:17,888 --> 01:13:18,889 DIRECT CARE WORKFORCE THAT 1525 01:13:18,889 --> 01:13:21,158 SUPPORTS PEOPLE WITH 1526 01:13:21,158 --> 01:13:21,792 DISABILITIES TO LIVE IN THE 1527 01:13:21,792 --> 01:13:25,295 COMMUNITY AS WELL AS OLDER 1528 01:13:25,295 --> 01:13:26,663 ADULTS. 1529 01:13:26,663 --> 01:13:30,601 AND THAT A LOT OF CARE IS THEN 1530 01:13:30,601 --> 01:13:33,570 ENDS UP BEING PROVIDED BY FAMILY 1531 01:13:33,570 --> 01:13:35,005 MEMBERS BECAUSE OF THE REAL LACK 1532 01:13:35,005 --> 01:13:37,441 OF DIRECT CARE WORKERS WE HAVE 1533 01:13:37,441 --> 01:13:37,774 RIGHT NOW. 1534 01:13:37,774 --> 01:13:42,379 SO WE HAVE A NUMBER OF 1535 01:13:42,379 --> 01:13:44,114 ACTIVITIES AND INITIATIVES THAT 1536 01:13:44,114 --> 01:13:47,084 WE'RE WORKING ON TO ADDRESS THE 1537 01:13:47,084 --> 01:13:48,685 CAREGIVER CRISIS AND WE HAVE A 1538 01:13:48,685 --> 01:13:50,587 SIGNIFICANT INVESTMENT AND A 1539 01:13:50,587 --> 01:13:54,691 GRANT TO THE NATIONAL COUNCIL ON 1540 01:13:54,691 --> 01:13:56,760 AGING ON THE DIRECT CARE 1541 01:13:56,760 --> 01:13:59,062 WORKFORCE AND THAT IS A PROJECT 1542 01:13:59,062 --> 01:14:00,964 THAT IS NOT ONLY ADDRESSING THE 1543 01:14:00,964 --> 01:14:02,900 CAREGIVING NEEDS OF OLDER ADULTS 1544 01:14:02,900 --> 01:14:04,735 BUT ALSO THE CAREGIVING NEEDS OF 1545 01:14:04,735 --> 01:14:07,804 PEOPLE WITH DISABILITIES ACROSS 1546 01:14:07,804 --> 01:14:09,406 THE LIFE SPAN. 1547 01:14:09,406 --> 01:14:13,410 WE ALSO HAVE THE NATIONAL 1548 01:14:13,410 --> 01:14:15,846 CAREGIVER SUPPORT PROGRAM AND 1549 01:14:15,846 --> 01:14:17,848 THE LIFE SPAN RESPITE PROGRAM 1550 01:14:17,848 --> 01:14:19,316 ALSO WITHIN ACL. 1551 01:14:19,316 --> 01:14:26,323 WE HAVE OVERSIGHT AND SUPPORT 1552 01:14:26,323 --> 01:14:31,128 THE REYES FAMILY CAREGIVER ACT 1553 01:14:31,128 --> 01:14:34,865 AND THE SUPPORTING GRANDPARENTS 1554 01:14:34,865 --> 01:14:36,166 RAISING GRANDCHILDREN ACT. 1555 01:14:36,166 --> 01:14:38,969 THROUGH THOSE COMMITTEES WE HAVE 1556 01:14:38,969 --> 01:14:40,604 ISSUED A NATIONAL STRATEGY ON 1557 01:14:40,604 --> 01:14:44,107 CAREGIVING TO ADDRESS THE 1558 01:14:44,107 --> 01:14:46,743 CAREGIVING CRISIS AND ALSO HELP 1559 01:14:46,743 --> 01:14:49,880 SUPPORT THE CAREGIVERS THAT ARE 1560 01:14:49,880 --> 01:14:51,181 PROVIDING CARE TO INDIVIDUALS 1561 01:14:51,181 --> 01:14:53,817 WITH DISABILITIES AND OLDER 1562 01:14:53,817 --> 01:14:54,084 ADULTS. 1563 01:14:54,084 --> 01:14:59,089 I WANT TO LAST TOUCH ON OUR 1564 01:14:59,089 --> 01:15:04,995 PRIORITY AROUND ADVANCING EQUITY 1565 01:15:04,995 --> 01:15:08,865 TO ADDRESS THE NEEDS OF 1566 01:15:08,865 --> 01:15:10,467 MARGINALIZED POPULATIONS AND 1567 01:15:10,467 --> 01:15:11,368 LOOK AT THE NATIONAL 1568 01:15:11,368 --> 01:15:11,668 PERSPECTIVE. 1569 01:15:11,668 --> 01:15:13,136 THIS IS REFLECTED IN EVERYTHING 1570 01:15:13,136 --> 01:15:15,472 WE DO. 1571 01:15:15,472 --> 01:15:17,975 SO IN JUST THE WORK AND 1572 01:15:17,975 --> 01:15:20,611 INITIATIVES I JUST DESCRIBED AS 1573 01:15:20,611 --> 01:15:22,412 AN EXAMPLE, IN THE 1574 01:15:22,412 --> 01:15:25,048 IMPLEMENTATION AND ADDRESSING 1575 01:15:25,048 --> 01:15:30,087 THOSE WE ARE TAKING AN EQUITY 1576 01:15:30,087 --> 01:15:33,490 LENS AND INTERSECTIONAL LENS TO 1577 01:15:33,490 --> 01:15:34,091 ALL THAT WORK. 1578 01:15:34,091 --> 01:15:38,528 I NOW WANT TO MOVE TO BRIEFLY 1579 01:15:38,528 --> 01:15:39,162 HIGHLIGHT PRIORITIES WITHIN THE 1580 01:15:39,162 --> 01:15:41,932 ADMINISTRATION ON DISABILITIES. 1581 01:15:41,932 --> 01:15:43,900 WHILE WE HAVE OTHER DISABILITY 1582 01:15:43,900 --> 01:15:47,271 RELATED WORK THAT WE DO IN ACL 1583 01:15:47,271 --> 01:15:49,640 INCLUDING THROUGH THE NATIONAL 1584 01:15:49,640 --> 01:15:50,841 INSTITUTE ON DISABILITY 1585 01:15:50,841 --> 01:15:52,809 INDEPENDENT LIVING AND 1586 01:15:52,809 --> 01:15:53,944 REHABILITATION RESEARCH, I'M 1587 01:15:53,944 --> 01:15:59,082 GOING TO BECAUSE OF THE SHORT 1588 01:15:59,082 --> 01:16:08,325 TIME WE HAVE WE PROMOTE HEALTH 1589 01:16:08,325 --> 01:16:14,698 EQUITY FOR PEOPLE WITH. 1590 01:16:14,698 --> 01:16:16,533 WE HAVE INITIATIVES AND 1591 01:16:16,533 --> 01:16:18,402 INVESTMENTS AND THERE'S SEVERAL 1592 01:16:18,402 --> 01:16:19,236 LINKS TO MORE INFORMATION ABOUT 1593 01:16:19,236 --> 01:16:20,103 THE PROJECTS. 1594 01:16:20,103 --> 01:16:23,106 WE DON'T HAVE WEBSITES FOR 1595 01:16:23,106 --> 01:16:26,877 EVERYTHING BECAUSE SOME OF THESE 1596 01:16:26,877 --> 01:16:37,321 ARE NEW SUPPORTS LIKE FOR 1597 01:16:38,455 --> 01:16:46,129 COMMUNICATION DEVICES. 1598 01:16:46,129 --> 01:16:46,997 WE HAVE GAPS INCLUDING PEOPLE 1599 01:16:46,997 --> 01:16:56,973 WITH DISABILITIES. 1600 01:16:56,973 --> 01:16:58,442 THE NEXT IS ON ECONOMIC 1601 01:16:58,442 --> 01:17:00,877 DISABILITY AND MOBILITY AND 1602 01:17:00,877 --> 01:17:02,412 FOCUSSED ON CAREER TRAJECTORIES 1603 01:17:02,412 --> 01:17:06,149 FOR PEOPLE WITH DISABILITIES AND 1604 01:17:06,149 --> 01:17:08,452 SUPPORTING COMPETITIVE 1605 01:17:08,452 --> 01:17:09,820 INTEGRATIVE EMPLOYMENT. 1606 01:17:09,820 --> 01:17:12,155 WE HAVE A STATE GRID THAT WE'RE 1607 01:17:12,155 --> 01:17:14,257 IN SEVEN STATES WITH GRANTS 1608 01:17:14,257 --> 01:17:16,126 CALLED COMMUNITY COLLABORATIONS 1609 01:17:16,126 --> 01:17:19,896 FOR EMPLOYMENT TO SUPPORT 1610 01:17:19,896 --> 01:17:21,832 COORDINATION AND COLLABORATION 1611 01:17:21,832 --> 01:17:23,600 AND FACILITATE YOUTH 1612 01:17:23,600 --> 01:17:25,569 TRANSITIONING TO POST SECONDARY 1613 01:17:25,569 --> 01:17:27,404 LIFE AND WE ALSO JUST TO 1614 01:17:27,404 --> 01:17:28,672 HIGHLIGHT ANOTHER PROJECT WE 1615 01:17:28,672 --> 01:17:34,311 HAVE IS A LONGITUDINAL STUDY 1616 01:17:34,311 --> 01:17:36,113 THAT LOOKS AT THE TRENDS AND 1617 01:17:36,113 --> 01:17:39,549 COMPETITIVE INTEGRATIVE 1618 01:17:39,549 --> 01:17:42,052 EMPLOYMENT FOR PEOPLE WITH 1619 01:17:42,052 --> 01:17:42,719 DEVELOPMENT DISABILITIES. 1620 01:17:42,719 --> 01:17:44,321 VERY IMPORTANT TO OUR WORK IS 1621 01:17:44,321 --> 01:17:44,988 PROTECTING RIGHTS AND PREVENTING 1622 01:17:44,988 --> 01:17:55,098 ABUSE. 1623 01:18:01,938 --> 01:18:05,075 WE LOOK AT HEALTH AND SAFETY IN 1624 01:18:05,075 --> 01:18:08,645 THE COMMUNITY AND BETTER USE OF 1625 01:18:08,645 --> 01:18:12,682 DATA TO MITIGATE INSTANCES OF 1626 01:18:12,682 --> 01:18:13,216 ABUSE AND NEGLECT. 1627 01:18:13,216 --> 01:18:14,618 WE'VE COME TO THE CLOSE OF THOSE 1628 01:18:14,618 --> 01:18:16,119 PROJECTS SOME ARE CLOSING 1629 01:18:16,119 --> 01:18:17,287 ACTIVITIES BUT WE'RE CONTINUING 1630 01:18:17,287 --> 01:18:21,425 EVALUATION OF THAT AND USING THE 1631 01:18:21,425 --> 01:18:22,893 FINDINGS TO HELP INFORM HOW TO 1632 01:18:22,893 --> 01:18:24,127 IMPROVE HEALTH AND SAFETY IN THE 1633 01:18:24,127 --> 01:18:26,029 COMMUNITY AND THEN WE ALSO HAVE 1634 01:18:26,029 --> 01:18:28,231 THE CENTER FOR YOUTH VOICE AND 1635 01:18:28,231 --> 01:18:33,203 YOUTH CHOICE WHICH IS ADDRESSING 1636 01:18:33,203 --> 01:18:34,771 THE PIPELINE AS YOUTH TRANSITION 1637 01:18:34,771 --> 01:18:36,106 OUT OF SCHOOL THEY GET MORE 1638 01:18:36,106 --> 01:18:38,575 INFORMATION AND FAMILIES GET 1639 01:18:38,575 --> 01:18:41,244 MORE INFORMATION ABOUT 1640 01:18:41,244 --> 01:18:49,052 ALTERNATIVES TO GUARDIANSHIP. 1641 01:18:49,052 --> 01:18:51,121 THE LAST IS EMPOWERING 1642 01:18:51,121 --> 01:18:52,222 INDIVIDUALS, FAMILIES AND 1643 01:18:52,222 --> 01:18:52,522 COMMUNITIES. 1644 01:18:52,522 --> 01:18:54,524 THIS IS ALSO VERY IMPORTANT TO 1645 01:18:54,524 --> 01:18:55,992 THE WORK WE DO IN VERY CORE TO 1646 01:18:55,992 --> 01:18:58,495 WHAT WE DO AND WE HAVE A NUMBER 1647 01:18:58,495 --> 01:18:59,930 OF PROJECTS THAT WE ARE FUNDING 1648 01:18:59,930 --> 01:19:05,235 THAT ARE INTENDED REALLY TO 1649 01:19:05,235 --> 01:19:07,604 BUILD SELF ADVOCACY AND 1650 01:19:07,604 --> 01:19:08,572 SELF-DETERMINATION SKILLS FOR 1651 01:19:08,572 --> 01:19:09,706 INDIVIDUALS WITH DISABILITIES 1652 01:19:09,706 --> 01:19:11,741 AND RAISE AWARENESS AND HELP 1653 01:19:11,741 --> 01:19:12,642 OTHERS IN UNDERSTAND HOW TO 1654 01:19:12,642 --> 01:19:23,186 SUPPORT THAT WITHIN INDIVIDUALS. 1655 01:19:28,024 --> 01:19:32,162 THAT'S MY LAST SLIDE. 1656 01:19:32,162 --> 01:19:33,864 >> LAST WE'LL HEAR FROM ROBERT 1657 01:19:33,864 --> 01:19:35,365 OCHSENDORF. 1658 01:19:35,365 --> 01:19:37,467 >> THANK YOU, SUSAN. 1659 01:19:37,467 --> 01:19:38,301 GOOD MORNING, EVERYBODY. 1660 01:19:38,301 --> 01:19:40,637 ROB OCHSENDORF WITH THE NATIONAL 1661 01:19:40,637 --> 01:19:41,271 SCIENCE FOUNDATION. 1662 01:19:41,271 --> 01:19:51,581 HAPPY TO BE HERE. 1663 01:19:59,623 --> 01:20:01,925 NSF MISSION IS LISTED HERE. 1664 01:20:01,925 --> 01:20:08,098 SO NSF WAS FOUNDED AS A FEDERAL 1665 01:20:08,098 --> 01:20:12,936 AGENCY IN 1950 FOR RESEARCH IN 1666 01:20:12,936 --> 01:20:14,337 ALL S.T.E.M. DISCIPLINES. 1667 01:20:14,337 --> 01:20:17,240 NSF THE MAIN FUNDER IN ACADEMIC 1668 01:20:17,240 --> 01:20:20,110 AREAS NOT SUPPORTED BY NIH AND 1669 01:20:20,110 --> 01:20:24,848 NASA. 1670 01:20:24,848 --> 01:20:27,417 THERE'S MATH AND PHYSICAL 1671 01:20:27,417 --> 01:20:31,421 SCIENCES AND ENGINEERING, 1672 01:20:31,421 --> 01:20:33,423 GEOSCIENCES, BIOLOGY, SOCIAL AND 1673 01:20:33,423 --> 01:20:35,125 BEHAVIORAL SCIENCES, S.T.E.M. 1674 01:20:35,125 --> 01:20:37,961 EDUCATION WHERE I RESIDE, I'M A 1675 01:20:37,961 --> 01:20:38,695 PROGRAM DIRECTOR IN THE S.T.E.M. 1676 01:20:38,695 --> 01:20:41,765 EDUCATION DIRECTOR AND THERE'S A 1677 01:20:41,765 --> 01:20:43,199 BRAND NEW DIRECTORATE FOCUSSED 1678 01:20:43,199 --> 01:20:44,601 ON TECHNOLOGY AND PARTNERSHIPS 1679 01:20:44,601 --> 01:20:53,343 WHICH BEGAN LAST YEAR. 1680 01:20:53,343 --> 01:20:55,245 PICTURED ARE NOTABLE AREAS OF 1681 01:20:55,245 --> 01:20:58,715 INVESTMENT BY NSF IN THE LAST 70 1682 01:20:58,715 --> 01:20:59,316 YEARS. 1683 01:20:59,316 --> 01:21:05,522 YOU CAN SEE AREAS WITH 1684 01:21:05,522 --> 01:21:07,557 ASTRONOMY, COMPUTER SCIENCE, 1685 01:21:07,557 --> 01:21:12,162 MATERIAL SCIENCE, NSF LIKES TO 1686 01:21:12,162 --> 01:21:15,131 TOUT THE EARLY SEARCH ALGORITHM 1687 01:21:15,131 --> 01:21:18,935 DEVELOPED BY THE FOUNDERS OF 1688 01:21:18,935 --> 01:21:21,171 GOOGLE WAS A DOCTORAL RESEARCH 1689 01:21:21,171 --> 01:21:21,871 GRANT TO STANFORD UNIVERSITY 1690 01:21:21,871 --> 01:21:23,239 WHETHER THOSE TWO INDIVIDUALS 1691 01:21:23,239 --> 01:21:24,941 WERE GRADUATE STUDENTS AND HAD A 1692 01:21:24,941 --> 01:21:27,744 GREAT IDEA HOW TO MORE 1693 01:21:27,744 --> 01:21:30,347 EFFICIENTLY AND EFFECTIVELY 1694 01:21:30,347 --> 01:21:32,315 SEARCH THIS NEW THING CALLED THE 1695 01:21:32,315 --> 01:21:37,887 INTERNET GIVING RISE TO GOOGLE. 1696 01:21:37,887 --> 01:21:40,724 NSF HAS A TRADITION COMMITTED TO 1697 01:21:40,724 --> 01:21:41,491 EXPANDING OPPORTUNITIES TO 1698 01:21:41,491 --> 01:21:44,094 S.T.E.M. FOR PEOPLE OF ALL 1699 01:21:44,094 --> 01:21:45,595 RACIAL ETHNIC GEOGRAPHIC AND 1700 01:21:45,595 --> 01:21:47,764 SOCIO ECONOMIC BACKGROUNDS, 1701 01:21:47,764 --> 01:21:49,299 SEXUAL ORIENTATIONS, AND TO 1702 01:21:49,299 --> 01:21:52,235 PERSONS WITH DISABILITIES. 1703 01:21:52,235 --> 01:21:54,270 SOME RECENT INITIATIVES AND 1704 01:21:54,270 --> 01:21:56,106 FUNDING ACTIVITIES AT NSF I'D 1705 01:21:56,106 --> 01:21:58,942 LIKE TO HIGHLIGHT. 1706 01:21:58,942 --> 01:22:05,949 LAST YEAR, NSF WITH NIF FUNDED A 1707 01:22:05,949 --> 01:22:09,319 $20 MILLION ARTIFICIAL 1708 01:22:09,319 --> 01:22:09,986 INTELLIGENCE INSTITUTE ON SPEECH 1709 01:22:09,986 --> 01:22:11,254 AND LANGUAGE AT THE UNIVERSITY 1710 01:22:11,254 --> 01:22:12,989 OF BUFFALO. 1711 01:22:12,989 --> 01:22:15,892 THIS A.I. INSTITUTE FOCUSES ON 1712 01:22:15,892 --> 01:22:16,960 TRANSFORMING EDUCATION WITH 1713 01:22:16,960 --> 01:22:18,962 PEOPLE WITH SPEECH AND LANGUAGE 1714 01:22:18,962 --> 01:22:20,030 PROCESSING CHALLENGES. 1715 01:22:20,030 --> 01:22:23,867 THE TEAM AIMS TO ADDRESS THE 1716 01:22:23,867 --> 01:22:25,568 CHALLENGES USING AN A.I. ENABLED 1717 01:22:25,568 --> 01:22:27,037 SCREENER AND ORCHESTRATER. 1718 01:22:27,037 --> 01:22:30,473 THE GOALS ARE TO USE A.I. TO 1719 01:22:30,473 --> 01:22:34,010 MORE RAPIDLY AND EFFECTIVELY 1720 01:22:34,010 --> 01:22:37,514 SCREEN YOUNG CHILDREN FOR SPEECH 1721 01:22:37,514 --> 01:22:38,715 DISABILITIES AND DELIVER 1722 01:22:38,715 --> 01:22:39,616 EVIDENCE-BASED AND CUSTOMIZED 1723 01:22:39,616 --> 01:22:41,751 SPEECH LANGUAGE INTERVENTIONS TO 1724 01:22:41,751 --> 01:22:52,262 STUDENTS IN NEED IN PRE K-12 1725 01:22:52,829 --> 01:22:54,230 STUDENTS AND THERE'S A SHORTAGE 1726 01:22:54,230 --> 01:22:54,964 TO MEET THE NEEDS IN 1727 01:22:54,964 --> 01:22:55,632 U.S. CLASSROOMS. 1728 01:22:55,632 --> 01:22:58,568 THE IDEA IS TO LEVERAGE ADVANCES 1729 01:22:58,568 --> 01:23:03,807 IN A.I., LARGE LANGUAGE MODELS, 1730 01:23:03,807 --> 01:23:05,241 NATURAL LANGUAGE PROCESSING 1731 01:23:05,241 --> 01:23:06,142 HOPEFULLY SCREEN MORE KIDS AND 1732 01:23:06,142 --> 01:23:09,179 DELIVER STRONGER INTERVENTIONS. 1733 01:23:09,179 --> 01:23:12,115 IN ADDITION, NSF HAS RECENTLY 1734 01:23:12,115 --> 01:23:15,819 FUNDED SIX WHAT WE CALL 1735 01:23:15,819 --> 01:23:16,619 CONVERGENCE ACCELERATOR PROJECTS 1736 01:23:16,619 --> 01:23:20,557 FOCUSSED ON INDIVIDUALS WITH 1737 01:23:20,557 --> 01:23:21,024 DISABILITIES. 1738 01:23:21,024 --> 01:23:24,561 THEY'RE ADDRESSING CHALLENGES 1739 01:23:24,561 --> 01:23:29,232 FACED BY PERSONS INCLUDING THE 1740 01:23:29,232 --> 01:23:33,770 ASSISTIVE AND REHABILITATIVE 1741 01:23:33,770 --> 01:23:35,004 TECHNOLOGIES AND OPPORTUNITIES 1742 01:23:35,004 --> 01:23:36,306 TO GAIN EMPLOYMENT AND THERE'S 1743 01:23:36,306 --> 01:23:38,341 SIX MULTI-DISCIPLINARY RESEARCH 1744 01:23:38,341 --> 01:23:40,110 TEAMS TO ADVANCE A CONVERGENCE 1745 01:23:40,110 --> 01:23:43,613 APPROACH BETWEEN RESEARCHERS, 1746 01:23:43,613 --> 01:23:46,916 INNOVATORS AND PERSONS WITH 1747 01:23:46,916 --> 01:23:48,218 DISABILITIES SPANG ORGANIZATIONS 1748 01:23:48,218 --> 01:23:49,586 ACROSS SECTORS. 1749 01:23:49,586 --> 01:23:52,922 THIS IS TO ENSURE THE NSF FUNDED 1750 01:23:52,922 --> 01:23:54,457 SOLUTIONS ADDRESS BARRIERS TO 1751 01:23:54,457 --> 01:23:55,859 EMPLOYMENT, FREEDOM OF MOVEMENT 1752 01:23:55,859 --> 01:23:59,028 AND QUALITY OF LIFE FOR PERSONS 1753 01:23:59,028 --> 01:23:59,729 WITH DISABLES. 1754 01:23:59,729 --> 01:24:02,031 RELATED TO THE IACC, NSF 1755 01:24:02,031 --> 01:24:04,701 PROJECTS CONTINUE TO BE 1756 01:24:04,701 --> 01:24:05,268 REPRESENTED IN THE AUTISM 1757 01:24:05,268 --> 01:24:06,669 RESEARCH DATABASE IN THE LAST 1758 01:24:06,669 --> 01:24:09,172 SEVERAL YEARS, NSF HAS FUNDED 1759 01:24:09,172 --> 01:24:11,274 HUNDREDS OF RESEARCH PROJECTS 1760 01:24:11,274 --> 01:24:13,409 FOCUSSED ON STEM LEARNING AND 1761 01:24:13,409 --> 01:24:14,577 WORKFORCE DEVELOPMENT ISSUES AND 1762 01:24:14,577 --> 01:24:15,912 BROADENING RESEARCH FOR 1763 01:24:15,912 --> 01:24:16,446 INDIVIDUALS ON THE AUTISM 1764 01:24:16,446 --> 01:24:23,753 SPECTRUM. 1765 01:24:23,753 --> 01:24:25,855 THESE ARE SOME OF THE PROMINENT 1766 01:24:25,855 --> 01:24:28,158 AREAS IN WHICH NSF FUNDS 1767 01:24:28,158 --> 01:24:30,326 AUTISM-RELATED RESEARCH. 1768 01:24:30,326 --> 01:24:33,997 YOU CAN SEE MY AREA MOSTLY IN 1769 01:24:33,997 --> 01:24:36,065 K-12 S.T.E.M. EDUCATION AND A 1770 01:24:36,065 --> 01:24:39,102 LOT OF WORK WE SUPPORT IN 1771 01:24:39,102 --> 01:24:40,770 UNDERGRADUATE S.T.E.M. 1772 01:24:40,770 --> 01:24:42,305 EDUCATION, INDIVIDUALS WITH 1773 01:24:42,305 --> 01:24:46,075 AUTISM AND ON COLLEGE CAMPUSES, 1774 01:24:46,075 --> 01:24:47,377 HOW ARE WE HELPING UNIVERSITIES 1775 01:24:47,377 --> 01:24:50,213 AND FACULTY TO BE SUPPORTIVE OF 1776 01:24:50,213 --> 01:24:52,382 INDIVIDUALS ON THE SPECTRUM 1777 01:24:52,382 --> 01:24:54,784 PURSUING S.T.E.M. EDUCATION 1778 01:24:54,784 --> 01:24:55,018 DEGREES. 1779 01:24:55,018 --> 01:24:55,618 INFORMAL S.T.E.M. EDUCATION 1780 01:24:55,618 --> 01:24:58,121 WHICH REFERS TO OUTSIDE OF 1781 01:24:58,121 --> 01:25:00,123 SCHOOL OPPORTUNITIES SO THINK 1782 01:25:00,123 --> 01:25:05,361 ABOUT MUSEUM, SCIENCE CENTERS, 1783 01:25:05,361 --> 01:25:07,697 POD CASTS, CHILDREN'S 1784 01:25:07,697 --> 01:25:07,997 TELEVISION. 1785 01:25:07,997 --> 01:25:11,668 WE FUND QUITE A BIT IN THAT 1786 01:25:11,668 --> 01:25:14,270 SPACE WITH AUTISM FOCUS AND 1787 01:25:14,270 --> 01:25:15,471 SMALL BUSINESS INNOVATION AND I 1788 01:25:15,471 --> 01:25:19,175 DON'T WORK IN THESE AREAS BUT 1789 01:25:19,175 --> 01:25:20,443 NSF FUNDS A LOT IN SMALL 1790 01:25:20,443 --> 01:25:24,113 BUSINESS INNOVATION. 1791 01:25:24,113 --> 01:25:27,417 THINK OF WEARABLE TECH TO ASSIST 1792 01:25:27,417 --> 01:25:28,852 PEOPLE ON THE SPECTRUM, S.T.E.M. 1793 01:25:28,852 --> 01:25:30,987 WORKFORCE DEVELOPMENT. 1794 01:25:30,987 --> 01:25:33,089 WE FUND COGNITIVE AND BEHAVIORAL 1795 01:25:33,089 --> 01:25:34,958 RESEARCH LOOKING AT 1796 01:25:34,958 --> 01:25:37,627 OPPORTUNITIES, CHALLENGES 1797 01:25:37,627 --> 01:25:38,628 RELATED TO S.T.E.M. LEARNING FOR 1798 01:25:38,628 --> 01:25:40,096 INDIVIDUALS ON THE SPECTRUM AND 1799 01:25:40,096 --> 01:25:43,066 THEN WE ALSO SUPPORT A VARIETY 1800 01:25:43,066 --> 01:25:44,734 OF CONVENINGS AND WORKSHOPS ON 1801 01:25:44,734 --> 01:25:45,268 THE TOPIC AS WELL. 1802 01:25:45,268 --> 01:25:47,237 SO THANK YOU AND HAPPY TO BE 1803 01:25:47,237 --> 01:25:50,840 HERE. 1804 01:25:50,840 --> 01:25:52,609 SUSAN: SO WE HEARD FROM A 1805 01:25:52,609 --> 01:25:58,414 SELECTION OF OUR FIWA MEMBERS 1806 01:25:58,414 --> 01:26:02,552 AND APPRECIATE WORKING WITH THEM 1807 01:26:02,552 --> 01:26:13,096 OB A REGULAR BASIS AND WE ONLY 1808 01:26:15,331 --> 01:26:17,066 HAVE A FEW MINUTES ABOUT 10 1809 01:26:17,066 --> 01:26:20,103 MINUTES TO TAKE QUESTIONS FROM 1810 01:26:20,103 --> 01:26:30,346 THE COMMITTEE. 1811 01:26:32,515 --> 01:26:34,417 >> I WANT TO THANK EVERYONE WHO 1812 01:26:34,417 --> 01:26:37,453 PRESENTED TODAY ACROSS THE 1813 01:26:37,453 --> 01:26:38,855 MULTIPLE AGENCIES -- 1814 01:26:38,855 --> 01:26:39,622 >> OH, YEAH. 1815 01:26:39,622 --> 01:26:39,923 OKAY. 1816 01:26:39,923 --> 01:26:41,991 LET ME TAKE THE MASK OFF. 1817 01:26:41,991 --> 01:26:43,860 THANK YOU FOR EVERYONE WHO 1818 01:26:43,860 --> 01:26:45,428 PRESENTED AND FOR ALL YOUR HARD 1819 01:26:45,428 --> 01:26:45,795 WORK. 1820 01:26:45,795 --> 01:26:47,697 REALLY EXCITED ABOUT THE WORK 1821 01:26:47,697 --> 01:26:48,064 GROUP. 1822 01:26:48,064 --> 01:26:51,234 I DO HAVE A QUESTION THAT IS 1823 01:26:51,234 --> 01:26:52,869 CONCERNING AS I THINK ABOUT HOW 1824 01:26:52,869 --> 01:26:55,071 THIS WORK IS BEING TRANSLATED 1825 01:26:55,071 --> 01:26:58,574 OUT TO THE LARGER AUTISM 1826 01:26:58,574 --> 01:26:58,841 COMMUNITY. 1827 01:26:58,841 --> 01:26:59,909 SO THERE'S A LOT OF GREAT 1828 01:26:59,909 --> 01:27:02,211 INITIATIVES I HEARD ABOUT TODAY. 1829 01:27:02,211 --> 01:27:04,113 SOME I ALREADY KNEW ABOUT AND 1830 01:27:04,113 --> 01:27:06,749 SOME I'M LEARNING ABOUT BUT WHAT 1831 01:27:06,749 --> 01:27:09,619 IS THE SUSTAINABILITY PLAN OF 1832 01:27:09,619 --> 01:27:11,788 THESE VARIOUS INITIATIVES? 1833 01:27:11,788 --> 01:27:14,624 HOW IS IT REACHING THE LARGER 1834 01:27:14,624 --> 01:27:15,024 AUTISM COMMUNITY? 1835 01:27:15,024 --> 01:27:16,859 THAT'S WHAT I'M CONCERNED ABOUT. 1836 01:27:16,859 --> 01:27:19,295 WE ARE PRIVILEGED HERE TO BE AT 1837 01:27:19,295 --> 01:27:21,331 THIS TABLE AND HAVING THESE 1838 01:27:21,331 --> 01:27:23,633 CONVERSATIONS AND LEARNING ABOUT 1839 01:27:23,633 --> 01:27:26,636 WHAT'S HAPPENING BUT I'M 1840 01:27:26,636 --> 01:27:27,737 THINKING ABOUT AUTISTIC 1841 01:27:27,737 --> 01:27:29,205 INDIVIDUALS, THEY'RE FAMILY 1842 01:27:29,205 --> 01:27:32,108 MEMBERS AND CAREGIVERS WHO DO 1843 01:27:32,108 --> 01:27:34,677 NOT HAVE ACCESS TO THIS 1844 01:27:34,677 --> 01:27:35,144 INFORMATION. 1845 01:27:35,144 --> 01:27:37,180 WHAT IS BEING DONE TO ENSURE 1846 01:27:37,180 --> 01:27:40,817 THAT THIS IS GETTING OUT TO THE 1847 01:27:40,817 --> 01:27:41,150 LARGER MASSES? 1848 01:27:41,150 --> 01:27:42,752 THAT IS -- THIS IS SOMETHING 1849 01:27:42,752 --> 01:27:48,458 THAT KEEPS COMING UP FOR ME. 1850 01:27:48,458 --> 01:27:50,259 I DON'T THINK WE HAVE TIME TO 1851 01:27:50,259 --> 01:27:51,127 HEAR FROM EVERYONE. 1852 01:27:51,127 --> 01:27:53,629 WHAT I WOULD INVITE YOU ALL TO 1853 01:27:53,629 --> 01:27:55,231 DO IS IF WITH DON'T HAVE THE 1854 01:27:55,231 --> 01:27:56,733 TIME TO WRITE SOMETHING UP TO 1855 01:27:56,733 --> 01:27:57,767 SHARE WITH THE COMMITTEE BECAUSE 1856 01:27:57,767 --> 01:28:02,638 I THINK IT'S REALLY IMPORTANT TO 1857 01:28:02,638 --> 01:28:04,140 HIGHLIGHT HOW THIS WORK IS 1858 01:28:04,140 --> 01:28:06,342 TRANSLATING OUT TO THE COMMUNITY 1859 01:28:06,342 --> 01:28:07,710 AND HOW IS THE DISSEMINATION 1860 01:28:07,710 --> 01:28:09,445 PLAN AND HOW ARE WE SUSTAINING 1861 01:28:09,445 --> 01:28:09,712 THIS? 1862 01:28:09,712 --> 01:28:11,681 >> THAT'S A GREAT QUESTION AND 1863 01:28:11,681 --> 01:28:12,415 WONDERING IF THERE'S TEAM 1864 01:28:12,415 --> 01:28:14,784 MEMBERS THAT WOULD LIKE TO TAKE 1865 01:28:14,784 --> 01:28:18,187 A MOMENT TO ADDRESS THAT? 1866 01:28:18,187 --> 01:28:28,731 I'M THINKING IN PARTICULAR CDC 1867 01:28:37,373 --> 01:28:39,075 WOULD OTHERS LIKE TO DISCUSS 1868 01:28:39,075 --> 01:28:39,275 THIS? 1869 01:28:39,275 --> 01:28:42,945 >> IF I CAN JUMP IN AND SAY I'M 1870 01:28:42,945 --> 01:28:46,516 AN ACT EARLY AMBASSADOR AND IT 1871 01:28:46,516 --> 01:28:47,917 TAKES A LOT OF HARD WORK FOR US 1872 01:28:47,917 --> 01:28:52,455 TO GET INFORMATION OUT TO THE 1873 01:28:52,455 --> 01:28:52,722 COMMUNITY. 1874 01:28:52,722 --> 01:28:54,390 THERE ARE A LOT OF -- I'M SPEAK 1875 01:28:54,390 --> 01:28:56,526 FOR DC FOR A MOMENT AND SAY 1876 01:28:56,526 --> 01:28:58,594 THERE'S BEEN A LOT OF TURNOVER. 1877 01:28:58,594 --> 01:28:59,595 WE HEARD ABOUT WORKFORCE ACROSS 1878 01:28:59,595 --> 01:29:02,565 ALL THE AGENCIES AND HOW WE'RE 1879 01:29:02,565 --> 01:29:04,901 TRYING TO REACH FOLKS BUT THERE 1880 01:29:04,901 --> 01:29:07,503 ARE A GROUP OF US -- THERE'S 60 1881 01:29:07,503 --> 01:29:12,842 OF US ACROSS THE COUNTRY AND 1882 01:29:12,842 --> 01:29:15,011 DOING THIS WORK. 1883 01:29:15,011 --> 01:29:16,412 MAYBE THAT IS SOMETHING THAT 1884 01:29:16,412 --> 01:29:17,246 NEEDS TO BE TAKEN INTO 1885 01:29:17,246 --> 01:29:18,448 CONSIDERATION AS YOU'RE FUNDING 1886 01:29:18,448 --> 01:29:19,715 THE VARIOUS INITIATIVES. 1887 01:29:19,715 --> 01:29:25,555 I JUST WANTED TO THROW THAT OUT 1888 01:29:25,555 --> 01:29:29,192 AND SAY THIS IS SOMETHING WE'RE 1889 01:29:29,192 --> 01:29:30,026 CONSTANTLY WORKING ON. 1890 01:29:30,026 --> 01:29:32,328 I DON'T THINK EVERYONE'S GOING 1891 01:29:32,328 --> 01:29:33,329 HAVE THE ANSWER RIGHT NOW BUT WE 1892 01:29:33,329 --> 01:29:34,730 NEED TO BE THINKING ABOUT THIS 1893 01:29:34,730 --> 01:29:36,099 BECAUSE THE NUMBERS ARE GOING UP 1894 01:29:36,099 --> 01:29:38,401 WHICH IS AMAZING BECAUSE NOW 1895 01:29:38,401 --> 01:29:39,936 PEOPLE ARE GETTING THE HELP THEY 1896 01:29:39,936 --> 01:29:40,336 NEED. 1897 01:29:40,336 --> 01:29:43,706 IF WE CAN ACCESS IT, THERE IS 1898 01:29:43,706 --> 01:29:44,907 INDIVIDUALS WOULD HAVE THE 1899 01:29:44,907 --> 01:29:55,451 SKILLS TO SUPPORT THE COMMUNITY. 1900 01:29:58,654 --> 01:30:07,797 JOSH: [INDISCERNIBLE] 1901 01:30:07,797 --> 01:30:09,298 >> IN THE COMMENT SECTION SAID 1902 01:30:09,298 --> 01:30:12,335 THEY AGREE WITH WHAT YETTA HAS 1903 01:30:12,335 --> 01:30:18,341 STATED REGARDING DISSEMINATION. 1904 01:30:18,341 --> 01:30:19,909 JOSH: THANKS. 1905 01:30:19,909 --> 01:30:20,810 SCOTT. 1906 01:30:20,810 --> 01:30:22,745 SCOTT: I FORGOT TO MENTION I'M A 1907 01:30:22,745 --> 01:30:28,217 SENIOR AND POLICY ADVISER AT 1908 01:30:28,217 --> 01:30:29,785 ODEP, I FORGOT TO MENTION MY 1909 01:30:29,785 --> 01:30:30,186 TITLE. 1910 01:30:30,186 --> 01:30:31,787 SORRY ABOUT THAT. 1911 01:30:31,787 --> 01:30:33,990 WE TAKE SUSTAINABILITY IN MIND 1912 01:30:33,990 --> 01:30:35,892 WITH OUR REYES PROJECT AND OTHER 1913 01:30:35,892 --> 01:30:38,161 ACTIVITIES AND IT'S HELPING TO 1914 01:30:38,161 --> 01:30:43,933 INFORM THE LONGER TERM WORK TO 1915 01:30:43,933 --> 01:30:45,935 HELP NEURODIVERGENT PEOPLE AND 1916 01:30:45,935 --> 01:30:47,803 DRIVE WORK THROUGH POLICIES AND 1917 01:30:47,803 --> 01:30:48,304 PRACTICES. 1918 01:30:48,304 --> 01:30:50,106 SUSTAINABILITY IS ALWAYS PART OF 1919 01:30:50,106 --> 01:30:53,042 OUR WORK AND WE TAKE THE LONG 1920 01:30:53,042 --> 01:30:53,876 GAME, IF YOU WILL, BECAUSE 1921 01:30:53,876 --> 01:30:57,547 POLICY DEVELOPMENT TAKES MANY 1922 01:30:57,547 --> 01:31:00,116 YEARS OFF AND ENHANCE BUT I'M 1923 01:31:00,116 --> 01:31:02,852 GLAD THAT WAS EMPHASIZED AND 1924 01:31:02,852 --> 01:31:04,954 SOMETHING IF OUR SISTER AGENCIES 1925 01:31:04,954 --> 01:31:08,090 FOR INSTANCE HAVE OTHER IDEAS 1926 01:31:08,090 --> 01:31:10,860 FOR SUPPORTING OUR 1927 01:31:10,860 --> 01:31:12,862 SUSTAINABILITY AND SCALABILITY 1928 01:31:12,862 --> 01:31:13,796 WE'RE ALWAYS. 1929 01:31:13,796 --> 01:31:15,231 FOR OUR WORK ON INCREASING 1930 01:31:15,231 --> 01:31:16,098 ACCESS TO EMPLOYMENT AND 1931 01:31:16,098 --> 01:31:19,802 CAREERS. 1932 01:31:19,802 --> 01:31:20,937 SUSAN: THANK YOU SO MUCH, SCOTT. 1933 01:31:20,937 --> 01:31:23,272 I ALSO WANT TO SAY SOMETHING AS 1934 01:31:23,272 --> 01:31:28,611 NATIONAL AUTISM COORDINATOR AND 1935 01:31:28,611 --> 01:31:31,781 WE USE THE IACC TO AMPLIFY WHAT 1936 01:31:31,781 --> 01:31:34,984 EVERY AGENCY IS DOING AND EVERY 1937 01:31:34,984 --> 01:31:35,952 AGENCY PLANNING THEIR PROGRAM 1938 01:31:35,952 --> 01:31:37,220 HAS PLANS AND HAVE THEIR 1939 01:31:37,220 --> 01:31:38,421 AUDIENCE THROUGH THEIR SOCIAL 1940 01:31:38,421 --> 01:31:41,257 MEDIA AND OTHER MEANS BUT WE 1941 01:31:41,257 --> 01:31:43,559 ALSO AMPLIFY THAT BY HAVING THIS 1942 01:31:43,559 --> 01:31:45,795 PUBLIC MEETING AND OUR WEBSITE 1943 01:31:45,795 --> 01:31:47,029 IS PRETTY EXTENSIVE. 1944 01:31:47,029 --> 01:31:51,300 WE HAVE A NEWSLETTER, ETCETERA. 1945 01:31:51,300 --> 01:31:53,369 IF MEMBERS OF THE COMMITTEE HAVE 1946 01:31:53,369 --> 01:31:54,971 SUGGESTIONS ON SPECIFIC KINDS OF 1947 01:31:54,971 --> 01:31:56,105 DISSEMINATION THAT MAY BE 1948 01:31:56,105 --> 01:31:58,207 ACCOMPLISHED YOU'RE WELCOME TO 1949 01:31:58,207 --> 01:31:59,609 TALK WITH ME ABOUT IT AND WE CAN 1950 01:31:59,609 --> 01:32:03,112 LOOK INTO THAT BUT WE TRY TO AM 1951 01:32:03,112 --> 01:32:05,748 PLI -- AMPLIFY THE AGENCIES AS 1952 01:32:05,748 --> 01:32:13,356 WELL. 1953 01:32:13,356 --> 01:32:15,191 >> THIS IS AN IS VERY RELEVANT 1954 01:32:15,191 --> 01:32:16,092 CONVERSATION AND I'VE BEEN 1955 01:32:16,092 --> 01:32:17,627 TALKING TO CARE PROVIDERS AND 1956 01:32:17,627 --> 01:32:19,762 OTHERS THROUGH A BIG PROJECT 1957 01:32:19,762 --> 01:32:21,330 WE'RE WORKING ON ADD MADISON 1958 01:32:21,330 --> 01:32:23,899 HOUSE AND ONE BIG QUESTION IS 1959 01:32:23,899 --> 01:32:26,435 DISSEMINATION AND BEING ABLE TO 1960 01:32:26,435 --> 01:32:27,470 GET INFORMATION AND WE'RE 1961 01:32:27,470 --> 01:32:29,872 WONDERING IF IT WOULD BE A 1962 01:32:29,872 --> 01:32:33,342 POSSIBILITY OF A PUBLIC-PRIVATE 1963 01:32:33,342 --> 01:32:36,112 SITUATION SO VARIOUS AGENCIES 1964 01:32:36,112 --> 01:32:40,683 COULD HAVE AN IDENTIFICATION AND 1965 01:32:40,683 --> 01:32:44,887 PRIVATE THINGS BEING DONE 1966 01:32:44,887 --> 01:32:47,256 THERE'S A NEED FOR WORK TO MAKE 1967 01:32:47,256 --> 01:32:50,960 SURE CERTAIN THINGS ON THERE ARE 1968 01:32:50,960 --> 01:32:55,798 SOUND AND PEOPLE MAY TURN TO 1969 01:32:55,798 --> 01:32:57,066 I.S. BUT THERE'S OTHER 1970 01:32:57,066 --> 01:33:02,538 ANIMATIONS AND DIFFERENT THINGS 1971 01:33:02,538 --> 01:33:03,673 HAPPENING ACROSS THE COUNTRY AND 1972 01:33:03,673 --> 01:33:06,108 ALL GOOD THINGS ARE HAPPENING IN 1973 01:33:06,108 --> 01:33:08,110 ONE AREA SHOULDN'T BE SHARED IN 1974 01:33:08,110 --> 01:33:12,114 OTHER AREAS AND THERE'S NOT 1975 01:33:12,114 --> 01:33:15,351 REALLY A MECHANISM IN TAKING THE 1976 01:33:15,351 --> 01:33:17,286 KNOWLEDGE BASE SOMEONE IN ONE 1977 01:33:17,286 --> 01:33:18,988 LOCATION HAS FOUND THAT MAYBE 1978 01:33:18,988 --> 01:33:20,189 HELPFUL ACROSS THE COUNTRY. 1979 01:33:20,189 --> 01:33:28,097 THANK YOU. 1980 01:33:28,097 --> 01:33:29,598 >> THANKS. 1981 01:33:29,598 --> 01:33:30,966 JOSH: I THINK WE'LL TAKE OUR 1982 01:33:30,966 --> 01:33:35,271 BREAK NOW AND THERE'LL BE OTHER 1983 01:33:35,271 --> 01:33:41,344 OPPORTUNITIES [INDISCERNIBLE] 1984 01:33:41,344 --> 01:33:43,412 WE'LL BREAK NOW TO 11:50. 1985 01:33:43,412 --> 01:33:43,479 1986 01:33:57,885 --> 01:34:01,088 CONTINUED GOOD MORNING TO 1987 01:34:01,088 --> 01:34:01,522 EVERYONE. 1988 01:34:01,522 --> 01:34:03,791 THE NEXT SECTION OF OUR AGENDA 1989 01:34:03,791 --> 01:34:10,631 TODAY IS FOR US TO ADDRESS 1990 01:34:10,631 --> 01:34:11,765 OUTSTANDING IACC COMMITTEE 1991 01:34:11,765 --> 01:34:12,499 BUSINESS. 1992 01:34:12,499 --> 01:34:14,034 I'LL TURN THINGS OVER TO SUSAN 1993 01:34:14,034 --> 01:34:17,404 TO INTRODUCE OUR DISCUSSION FOR 1994 01:34:17,404 --> 01:34:18,706 THIS MORNING. 1995 01:34:18,706 --> 01:34:23,077 >> THANK YOU SO MUCH, JOSH. 1996 01:34:23,077 --> 01:34:25,312 I'M GOING TO START BY GIVING 1997 01:34:25,312 --> 01:34:26,547 CAMILLE PROCTOR A CHANCE TO 1998 01:34:26,547 --> 01:34:30,050 INTRODUCE HERSELF AND I KNOW YOU 1999 01:34:30,050 --> 01:34:32,319 JUST SAT DOWN BUT WE'LL LOVE TO 2000 01:34:32,319 --> 01:34:35,122 HEAR FROM YOU AS ONE OF OUR 2001 01:34:35,122 --> 01:34:38,058 NEWEST IACC MEMBERS. 2002 01:34:38,058 --> 01:34:47,001 >> HELLO, EVERYONE. 2003 01:34:47,001 --> 01:34:51,005 >> I'M CAMILLE PROCTOR AND 2004 01:34:51,005 --> 01:34:51,839 EXECUTIVE FOUNDER OF THE COLOR 2005 01:34:51,839 --> 01:34:53,974 OF AUTISM FOUNDATION. 2006 01:34:53,974 --> 01:34:55,476 WE SUPPORT FAMILIES AND 2007 01:34:55,476 --> 01:34:57,945 INDIVIDUALS IN UNDER SERVED 2008 01:34:57,945 --> 01:34:58,779 COMMUNITIES THROUGHOUT THE 2009 01:34:58,779 --> 01:34:59,480 UNITED STATES. 2010 01:34:59,480 --> 01:35:02,049 OUR FOCUS IS BUILDING EFFICACY 2011 01:35:02,049 --> 01:35:06,020 WITHIN THE FAMILIES AS WELL AS 2012 01:35:06,020 --> 01:35:07,921 SUPPORTING AUTISTIC INDIVIDUALS 2013 01:35:07,921 --> 01:35:08,889 ON THEIR PATHWAYS TO THEIR 2014 01:35:08,889 --> 01:35:19,667 VOICES AND CHOICES. THAT WOULD 2015 01:35:47,895 --> 01:35:49,630 PREVALENT IN MY COMMUNITY -- I 2016 01:35:49,630 --> 01:35:51,565 GOT TIRED OF TAKING THE ONE 2017 01:35:51,565 --> 01:35:54,034 MINORITY IN THE ORGANIZATIONS 2018 01:35:54,034 --> 01:35:58,806 AND USING THEM AS A TROPE OR 2019 01:35:58,806 --> 01:36:00,441 PROP TO GLAZE OVER THE ISSUES WE 2020 01:36:00,441 --> 01:36:03,177 DO HAVE IN YOU'RAN COMMUNITIES. 2021 01:36:03,177 --> 01:36:07,581 -- URBAN COMMUNITIES AND HOW 2022 01:36:07,581 --> 01:36:08,916 AND WHY THE COLOR OF AUTISM 2023 01:36:08,916 --> 01:36:09,683 FOUNDATION WAS FOUNDED. 2024 01:36:09,683 --> 01:36:11,618 THERE WAS A DEFINITE NEED AND 2025 01:36:11,618 --> 01:36:13,354 THERE WILL CONTINUE TO BE A 2026 01:36:13,354 --> 01:36:13,654 NEED. 2027 01:36:13,654 --> 01:36:16,724 THERE'S NOT ENOUGH MINORITIES AT 2028 01:36:16,724 --> 01:36:17,391 THE TABLE. 2029 01:36:17,391 --> 01:36:21,595 I JUST DECIDED, EXCUSE MY 2030 01:36:21,595 --> 01:36:24,398 EXPRESSION, TO BRING MY OWN DAMN 2031 01:36:24,398 --> 01:36:29,036 SEAT. 2032 01:36:29,036 --> 01:36:31,205 SUSAN: THANK YOU SO MUCH, 2033 01:36:31,205 --> 01:36:32,306 CAMILLE WE'RE PLEASED TO HAVE 2034 01:36:32,306 --> 01:36:35,042 YOU AS A SPEAKER AND HAD YOU ON 2035 01:36:35,042 --> 01:36:36,477 PANELS AND WILL BE CONTRIBUTING 2036 01:36:36,477 --> 01:36:36,944 TODAY WELL. 2037 01:36:36,944 --> 01:36:38,011 WE APPRECIATE THAT PERSPECTIVE. 2038 01:36:38,011 --> 01:36:38,545 WE'LL MOVE INTO COMMITTEE 2039 01:36:38,545 --> 01:36:47,988 BUSINESS. 2040 01:36:47,988 --> 01:36:49,723 SORRY, IT DOESN'T LIKE ME, I 2041 01:36:49,723 --> 01:36:50,524 DON'T THINK. 2042 01:36:50,524 --> 01:36:54,528 I'M GOING TO TELL YOU SOME ONAC 2043 01:36:54,528 --> 01:36:56,797 STAFF UPDATES AND TALK ABOUT 2044 01:36:56,797 --> 01:36:59,466 DOCUMENTS WE WORKED ON RECENTLY 2045 01:36:59,466 --> 01:37:01,435 AND OUR UPCOMING ACTIVITIES AS 2046 01:37:01,435 --> 01:37:06,507 WELL AS SUMMARY OF ADVANCES. 2047 01:37:06,507 --> 01:37:14,615 THERE'S A QUESTION. 2048 01:37:14,615 --> 01:37:16,583 >> THE COMMENT IS BRING A 2049 01:37:16,583 --> 01:37:18,485 FOLDING CHAIR. 2050 01:37:18,485 --> 01:37:21,622 SUSAN: THE ONAC STAFF UPDATES 2051 01:37:21,622 --> 01:37:24,725 ARE WE HAVE A NEW PERSON ON 2052 01:37:24,725 --> 01:37:30,030 BOARD ON OUR TAKE ANA CAPPUCCIO 2053 01:37:30,030 --> 01:37:32,166 BY TRAINING IS AN ATTORNEY AS 2054 01:37:32,166 --> 01:37:32,900 COORDINATOR AND WILL BE 2055 01:37:32,900 --> 01:37:37,337 ASSISTING WITH ADMINISTRATIVE 2056 01:37:37,337 --> 01:37:47,881 DUTIES IN THE OFFICE ALONG WITH 2057 01:37:48,248 --> 01:37:59,026 ANGELICE MITRAKAS AND STEVE JNI 2058 01:37:59,626 --> 01:38:02,529 ISAACSON RECENTLY GOT HIS DEGREE 2059 01:38:02,529 --> 01:38:04,631 IN SOCIAL WORK WHICH IS A 2060 01:38:04,631 --> 01:38:07,768 WONDERFUL ACCOMPLISHMENT AND AN 2061 01:38:07,768 --> 01:38:12,706 HE'S TAKEN ON A NEW ROLE AS OUR 2062 01:38:12,706 --> 01:38:14,741 FIRST NEURODIVERSITY LIAISON AND 2063 01:38:14,741 --> 01:38:18,045 ASSISTING IN OUTREACH AND 2064 01:38:18,045 --> 01:38:20,214 PROJECTS RELATED TO 2065 01:38:20,214 --> 01:38:21,381 NEURODIVERSITY SUCH AS AT WORK 2066 01:38:21,381 --> 01:38:23,350 AND WE APPRECIATED HIS 2067 01:38:23,350 --> 01:38:26,053 CONTRIBUTIONS TO THE IACC AND 2068 01:38:26,053 --> 01:38:26,720 WANTED TO PRIORITIZE THAT 2069 01:38:26,720 --> 01:38:30,390 OUTREACH AND CONNECTION WITH THE 2070 01:38:30,390 --> 01:38:30,691 COMMUNITY. 2071 01:38:30,691 --> 01:38:41,201 THANK YOU, STEVEN FOR SERVING. 2072 01:38:52,212 --> 01:38:55,115 AND THE AUTISM BIOMEDICAL AND 2073 01:38:55,115 --> 01:38:57,117 MEDICAL RESEARCH SELECTED BY THE 2074 01:38:57,117 --> 01:39:00,087 IACC INCLUDING ARTICLES 2075 01:39:00,087 --> 01:39:01,355 INCLUDING ALL SEVEN AREAS OF 2076 01:39:01,355 --> 01:39:01,722 STRATEGIC PLAN. 2077 01:39:01,722 --> 01:39:03,624 THE FULL REPORT CAN BE FOUND AT 2078 01:39:03,624 --> 01:39:04,925 THE LINK PROVIDED ON THE SLIDE 2079 01:39:04,925 --> 01:39:07,361 AND IT'S UP ON OUR WEBSITE IN 2080 01:39:07,361 --> 01:39:08,962 THE CAROUSEL WHEN YOU FIRST LOG 2081 01:39:08,962 --> 01:39:14,935 ON TO THE WEBSITE. 2082 01:39:14,935 --> 01:39:16,303 ALSO THERE'S AN EASY READ 2083 01:39:16,303 --> 01:39:17,404 VERSION ON THE REPORT LINKED 2084 01:39:17,404 --> 01:39:19,139 BELOW AND WE RECEIVED A PUBLIC 2085 01:39:19,139 --> 01:39:20,574 COMMENT THAT MENTIONED THEY 2086 01:39:20,574 --> 01:39:21,642 DIDN'T FEEL THE EASY READ WAS 2087 01:39:21,642 --> 01:39:26,680 EASY ENOUGH TO READ. 2088 01:39:26,680 --> 01:39:31,051 WE DID BOIL EACH RESEARCH PAPER 2089 01:39:31,051 --> 01:39:33,654 DOWN AND MAKE THEM READABLE BY 2090 01:39:33,654 --> 01:39:38,258 AT LEAST A SIXTH GRADER AND WE 2091 01:39:38,258 --> 01:39:39,726 DID NOT HAVE A WAY TO CONDENSE 2092 01:39:39,726 --> 01:39:42,029 TO PICTURES THAT WAS REQUESTED 2093 01:39:42,029 --> 01:39:45,632 IT BE DEPICTED IN PAPERS BUT 2094 01:39:45,632 --> 01:39:48,268 MOST RESEARCH PAPERS ARE 2095 01:39:48,268 --> 01:39:49,303 DIFFICULT TO SUMMARIZE IN A 2096 01:39:49,303 --> 01:39:49,970 PHOTO OR PICTURE. 2097 01:39:49,970 --> 01:39:52,339 THAT'S THE BEST WE CAN DO ON 2098 01:39:52,339 --> 01:39:53,640 TAKING A SCIENTIFIC PUBLICATION 2099 01:39:53,640 --> 01:39:56,510 DOWN TO A MORE CONDENSED VERSION 2100 01:39:56,510 --> 01:39:58,745 BUT WE HOPE THAT IT WILL BE 2101 01:39:58,745 --> 01:40:02,182 HELPFUL AND I KNOW I'VE RECEIVED 2102 01:40:02,182 --> 01:40:03,650 A LOT OF PUBLIC COMMENTS THAT 2103 01:40:03,650 --> 01:40:05,285 HAVE BEEN POSITIVE AND 2104 01:40:05,285 --> 01:40:07,521 SUPPORTIVE OF THAT. 2105 01:40:07,521 --> 01:40:09,823 THANK YOU SO MUCH. 2106 01:40:09,823 --> 01:40:11,692 NEXT, WE HAVE OUR UPCOMING 2107 01:40:11,692 --> 01:40:13,493 ACTIVITIES WHICH WE TALKED ABOUT 2108 01:40:13,493 --> 01:40:14,294 AT THE LAST MEETING. 2109 01:40:14,294 --> 01:40:19,066 SO IN OCTOBER 2023 THE IACC 2110 01:40:19,066 --> 01:40:21,034 VOTED TO FOCUS ON CO-OCCURRING 2111 01:40:21,034 --> 01:40:22,002 PHYSICAL AND MENTAL HEALTH 2112 01:40:22,002 --> 01:40:24,071 CONDITIONS AND THEIR IMPACTS ON 2113 01:40:24,071 --> 01:40:28,675 HEALTH OUTCOMES FOR THE 2024 2114 01:40:28,675 --> 01:40:30,043 IACC STRATEGIC PLAN UPDATE 2115 01:40:30,043 --> 01:40:31,345 BECAUSE WE ARE REQUIRED BY LAW 2116 01:40:31,345 --> 01:40:34,114 TO PROVIDE SOME TYPE OF UPDATE. 2117 01:40:34,114 --> 01:40:38,051 AND WE'RE GOING TO DO A DEEP 2118 01:40:38,051 --> 01:40:39,886 DIVE INTO THIS PARTICULAR AREA. 2119 01:40:39,886 --> 01:40:41,755 THE DRAFT REPORT ON CO-OCCURRING 2120 01:40:41,755 --> 01:40:44,524 CONDITIONS WAS ACTUALLY 2121 01:40:44,524 --> 01:40:45,325 INITIATED BY THE PREVIOUS 2122 01:40:45,325 --> 01:40:46,259 COMMITTEE AND WILL BE USED AS 2123 01:40:46,259 --> 01:40:50,564 THE FOUNDATION FOR THIS REPORT. 2124 01:40:50,564 --> 01:40:53,533 AS DECIDED IN 2023 BY THE 2125 01:40:53,533 --> 01:40:55,502 CURRENT IACC, ONAC IS GOING TO 2126 01:40:55,502 --> 01:40:59,506 WORK WITH THE WORKING GROUP 2127 01:40:59,506 --> 01:41:01,174 CHAIR, DR. JULIE TAYLOR TO 2128 01:41:01,174 --> 01:41:02,242 UPDATE THE DRAFT BEFORE IT COMES 2129 01:41:02,242 --> 01:41:05,479 BACK TO THE IACC FOR REVIEW. 2130 01:41:05,479 --> 01:41:08,215 AND IN ADDITION, ONAC PUBLISHED 2131 01:41:08,215 --> 01:41:10,517 A FORMAL REQUEST FOR PUBLIC 2132 01:41:10,517 --> 01:41:12,352 COMMENTS ON CO-OCCURRING 2133 01:41:12,352 --> 01:41:14,421 CONDITIONS ON BEHALF OF THE IACC 2134 01:41:14,421 --> 01:41:17,591 PER YOUR REQUEST AND THE RESULTS 2135 01:41:17,591 --> 01:41:20,093 OF THAT REQUEST FOR INFORMATION 2136 01:41:20,093 --> 01:41:22,696 WILL BE SHARED AT THE NEXT IACC 2137 01:41:22,696 --> 01:41:22,963 MEETING. 2138 01:41:22,963 --> 01:41:25,232 AND THE IACC WILL HAVE AN 2139 01:41:25,232 --> 01:41:28,402 OPPORTUNITY TO REVIEW THE 2140 01:41:28,402 --> 01:41:30,370 COMMENTS AND THE FINAL REPORT 2141 01:41:30,370 --> 01:41:33,674 OUR GOAL IS TO GET IT OUT IN 2142 01:41:33,674 --> 01:41:37,544 2024. 2143 01:41:37,544 --> 01:41:38,979 SO THIS IS A SLIDE ON THE 2144 01:41:38,979 --> 01:41:42,516 REQUEST FOR PUBLIC COMMENTS AND 2145 01:41:42,516 --> 01:41:43,950 IT IS OPEN UNTIL FEBRUARY 14 AND 2146 01:41:43,950 --> 01:41:46,920 THERE'S A WEB FORM WHERE YOU CAN 2147 01:41:46,920 --> 01:41:48,488 SUBMIT YOUR COMMENTS. 2148 01:41:48,488 --> 01:41:52,459 TO DATE, WE HAVE RECEIVED 678 2149 01:41:52,459 --> 01:41:56,229 COMPLETED SUBMISSIONS AND WE 2150 01:41:56,229 --> 01:41:57,664 ALSO HAVE 247 INCOMPLETE 2151 01:41:57,664 --> 01:41:59,433 SUBMISSIONS WHERE SOMEBODY MAY 2152 01:41:59,433 --> 01:42:01,268 NOT HAVE PRESSED SUBMIT AT THE 2153 01:42:01,268 --> 01:42:02,002 END OR MAYBE THEY'RE STILL 2154 01:42:02,002 --> 01:42:03,670 THINKING OR WORKING ON THIS. 2155 01:42:03,670 --> 01:42:05,639 WE WILL REACH OUT TO THOSE 2156 01:42:05,639 --> 01:42:07,107 INDIVIDUALS TO TRY TO GET THEM 2157 01:42:07,107 --> 01:42:08,041 TO COMPLETE THEIR COMMENTS. 2158 01:42:08,041 --> 01:42:09,443 WE HAVE ALREADY CAPTURED THE 2159 01:42:09,443 --> 01:42:10,377 INFORMATION IN OUR DATABASE BUT 2160 01:42:10,377 --> 01:42:12,679 WE DON'T WANT TO COUNT IT AS 2161 01:42:12,679 --> 01:42:15,315 COMPLETE UNTIL THE PERSON HAS 2162 01:42:15,315 --> 01:42:16,183 INDICATED THAT THEY'RE WANTING 2163 01:42:16,183 --> 01:42:17,017 TO SUBMIT IT. 2164 01:42:17,017 --> 01:42:18,652 WE'LL REACH BACK OUT TO THEM. 2165 01:42:18,652 --> 01:42:23,924 CAN STILL SUBMIT COMMENTS IF 2166 01:42:23,924 --> 01:42:26,860 YOU'RE HAVING ANY DIFFICULTY 2167 01:42:26,860 --> 01:42:31,598 WITH SUBMISSIONS RIS RIGHT TO OE 2168 01:42:31,598 --> 01:42:34,367 AND GET YOU PERSONAL ASSISTANCE 2169 01:42:34,367 --> 01:42:36,470 TO HELP SUBMIT YOUR COMMENT AND 2170 01:42:36,470 --> 01:42:37,838 THIS IN THE FEDERAL REGISTER AND 2171 01:42:37,838 --> 01:42:39,306 FEEL FREE TO SHARE THIS WITH 2172 01:42:39,306 --> 01:42:41,174 YOUR NETWORKS WIDELY IF YOU NEED 2173 01:42:41,174 --> 01:42:42,476 MATERIALS LIKE THE E MAIL THAT 2174 01:42:42,476 --> 01:42:44,478 WE SENT OUT YOU NEED A COPY OF 2175 01:42:44,478 --> 01:42:47,047 THAT SO YOU CAN FORWARD IT BY 2176 01:42:47,047 --> 01:42:48,982 E-MAIL OR IF YOU NEED A SOCIAL 2177 01:42:48,982 --> 01:42:50,984 MEDIA GRAPHIC LET US KNOW WE CAN 2178 01:42:50,984 --> 01:42:53,286 HELP YOU OUT WITH THAT BUT WOULD 2179 01:42:53,286 --> 01:42:55,355 LOVE TO GET AS MUCH AS INPUT AS 2180 01:42:55,355 --> 01:42:57,858 POSSIBLE TO GET THE MOST TIMELY 2181 01:42:57,858 --> 01:42:59,059 UPDATE TO THIS ISSUE IN THE NEXT 2182 01:42:59,059 --> 01:43:04,064 STRATEGIC PLAN UPDATE. 2183 01:43:04,064 --> 01:43:06,366 SO STEPS FOR THIS INCLUDE ONAC 2184 01:43:06,366 --> 01:43:12,839 IS GOING TO CAT DWOER -- 2185 01:43:12,839 --> 01:43:13,540 CATEGORIZE THIS AND GET IT BACK 2186 01:43:13,540 --> 01:43:16,476 TO YOU IN APRIL AND WORK ON 2187 01:43:16,476 --> 01:43:18,044 UPDATING THE DRAFT REPORT AND 2188 01:43:18,044 --> 01:43:20,280 INCORPORATING FEEDBACK FROM THE 2189 01:43:20,280 --> 01:43:22,849 REQUEST FOR PUBLIC COMMENTS AND 2190 01:43:22,849 --> 01:43:26,052 IACC MEMBERS WILL BE RECEIVING 2191 01:43:26,052 --> 01:43:28,889 THE OPPORTUNITY TO REVIEW THE 2192 01:43:28,889 --> 01:43:30,524 DRAFT AND WORK THROUGH THIS TO 2193 01:43:30,524 --> 01:43:33,727 FINALIZE THE REPORT THROUGHOUT 2194 01:43:33,727 --> 01:43:33,994 THE YEAR. 2195 01:43:33,994 --> 01:43:35,562 SO THAT'S THE END OF COMMITTEE 2196 01:43:35,562 --> 01:43:37,264 BUSINESS WHICH IS PRETTY SHORT. 2197 01:43:37,264 --> 01:43:39,900 WE DID FINISH OUR BIG STRATEGIC 2198 01:43:39,900 --> 01:43:42,002 PLAN UPDATE LAST FALL AND THAT 2199 01:43:42,002 --> 01:43:43,370 HAS GONE OUT ALREADY. 2200 01:43:43,370 --> 01:43:45,438 WE'VE COMPLETED THE 2022 SUMMARY 2201 01:43:45,438 --> 01:43:47,174 OF ADVANCES. 2202 01:43:47,174 --> 01:43:48,475 WE'RE WORKING TOWARDS 2023 WHICH 2203 01:43:48,475 --> 01:43:53,046 IS THE NEXT ITEM OF BUSINESS. 2204 01:43:53,046 --> 01:43:54,414 I'LL TAKE A PAUSE BEFORE WE MOVE 2205 01:43:54,414 --> 01:43:57,717 INTO SUMMARY OF ADVANCES TO ASK 2206 01:43:57,717 --> 01:44:02,656 IF THERE'S ANY QUESTIONS. 2207 01:44:02,656 --> 01:44:04,958 >> WHEN YOU ALL LOOK AT THE 2208 01:44:04,958 --> 01:44:06,126 PUBLIC COMMENTS, ARE YOU KEEPING 2209 01:44:06,126 --> 01:44:07,761 TRACK OF WHAT STATES AND 2210 01:44:07,761 --> 01:44:09,362 TERRITORIES ARE ACTUALLY 2211 01:44:09,362 --> 01:44:12,866 SUBMITTING COMMENTS FROM? 2212 01:44:12,866 --> 01:44:15,735 >> WE HAVE SOME VOLUNTARY 2213 01:44:15,735 --> 01:44:17,337 INFORMATION WE'VE PROVIDED. 2214 01:44:17,337 --> 01:44:18,939 WE DIDN'T ASK THEM THEIR STATES. 2215 01:44:18,939 --> 01:44:21,775 WE ASKED FOR WHETHER THEY MIGHT 2216 01:44:21,775 --> 01:44:23,610 BE AN INDIVIDUAL WITH AUTISM, A 2217 01:44:23,610 --> 01:44:24,811 PARENT, AN ADVOCATE, A 2218 01:44:24,811 --> 01:44:26,213 RESEARCHER, ETCETERA. 2219 01:44:26,213 --> 01:44:28,081 WE'LL HAVE THAT INFORMATION. 2220 01:44:28,081 --> 01:44:29,516 THEY CAN VOLUNTARILY PROVIDE 2221 01:44:29,516 --> 01:44:32,185 THEIR NAME AND ORGANIZATION IF 2222 01:44:32,185 --> 01:44:33,854 THEY WISH BUT I DOUBT WE'LL 2223 01:44:33,854 --> 01:44:35,088 PROBABLY HAVE STATES AND 2224 01:44:35,088 --> 01:44:35,388 TERRITORIES. 2225 01:44:35,388 --> 01:44:37,123 >> NOW THAT I'M THINKING ABOUT 2226 01:44:37,123 --> 01:44:38,658 IT, I'M THINKING, NO, YOU 2227 01:44:38,658 --> 01:44:39,492 WOULDN'T HAVE IT. 2228 01:44:39,492 --> 01:44:42,429 SORRY ABOUT THE QUESTION. 2229 01:44:42,429 --> 01:44:47,801 I'M JUST CURIOUS TO KNOW. 2230 01:44:47,801 --> 01:44:50,437 SUSAN: IF THE PERSON VOLUNTARILY 2231 01:44:50,437 --> 01:44:52,639 GIVES THEIR NAME AND THEIR 2232 01:44:52,639 --> 01:44:54,074 AFFILIATION, MANY PEOPLE WE 2233 01:44:54,074 --> 01:44:55,976 FOUND IN THE AUTISM COMMUNITY 2234 01:44:55,976 --> 01:44:58,545 LIKE TO HAVE THEIR NAME SHARED 2235 01:44:58,545 --> 01:45:00,780 WITH THEIR PUBLIC COMMENT SO WE 2236 01:45:00,780 --> 01:45:02,382 WANT TO GIVE THAT OPPORTUNITY 2237 01:45:02,382 --> 01:45:04,317 FOR ACKNOWLEDGEMENT. 2238 01:45:04,317 --> 01:45:05,986 PRIVACY NOT ALWAYS THE DESIRE OF 2239 01:45:05,986 --> 01:45:08,455 THE COMMENTER BUT WE WANT TO 2240 01:45:08,455 --> 01:45:09,556 PROTECT THE PRIVACY OF 2241 01:45:09,556 --> 01:45:10,490 INDIVIDUALS WHO DON'T WANT THEIR 2242 01:45:10,490 --> 01:45:11,791 INFORMATION SHARED. 2243 01:45:11,791 --> 01:45:12,659 WE'LL HAVE THAT DEMOGRAPHIC 2244 01:45:12,659 --> 01:45:15,295 BREAKDOWN FOR YOU IN TERMS OF 2245 01:45:15,295 --> 01:45:17,163 HOW MANY AUTISTIC INDIVIDUALS 2246 01:45:17,163 --> 01:45:19,199 MAY HAVE SUBMITTED BASED ON 2247 01:45:19,199 --> 01:45:20,867 WHOEVER VOLUNTARILY FILLS THAT 2248 01:45:20,867 --> 01:45:21,468 PART OUT. 2249 01:45:21,468 --> 01:45:31,811 >> THANK YOU, SUSAN. 2250 01:45:46,927 --> 01:45:50,463 THE MEMBERS HAVE BEEN IN 2251 01:45:50,463 --> 01:45:52,699 ARTICLES FROM DECEMBER OF 2023 2252 01:45:52,699 --> 01:45:54,768 AND TODAY YOU'RE GOING TO 2253 01:45:54,768 --> 01:45:57,304 DISCUSS NOMINATIONS AND AFTER 2254 01:45:57,304 --> 01:45:59,406 THIS MEETING IS OVER, ONCE 2255 01:45:59,406 --> 01:46:01,374 YOU'VE DISCUSSED THE NOMINATIONS 2256 01:46:01,374 --> 01:46:03,109 AND DECIDED IT YOU'RE 2257 01:46:03,109 --> 01:46:04,411 ELIMINATING OR ADDING OR HAVE 2258 01:46:04,411 --> 01:46:06,046 COMMENTS ON ANYTHING, AFTER THIS 2259 01:46:06,046 --> 01:46:07,247 MEETING WE'LL GIVE YOU THE 2260 01:46:07,247 --> 01:46:08,381 OPPORTUNITIES TO WORK ON THE TOP 2261 01:46:08,381 --> 01:46:10,483 20 ARTICLES TO BE PRESENTED IN 2262 01:46:10,483 --> 01:46:12,585 THE PUBLICATION AND ALL THE 2263 01:46:12,585 --> 01:46:13,520 REMAINING NOMINATIONS WILL BE 2264 01:46:13,520 --> 01:46:15,822 LISTED IN THE BACK OF THE 2265 01:46:15,822 --> 01:46:16,122 PUBLICATION. 2266 01:46:16,122 --> 01:46:20,927 OUR OFFICE, THE ONAC WILL WORK 2267 01:46:20,927 --> 01:46:23,363 ON PREPARING DRAFT SUMMARIES AND 2268 01:46:23,363 --> 01:46:24,164 THE PUBLICATION AND THE IACC 2269 01:46:24,164 --> 01:46:26,032 MEMBERS WILL HAVE A CHANCE TO 2270 01:46:26,032 --> 01:46:27,334 PREVIEW IT BEFORE PUBLISHED AND 2271 01:46:27,334 --> 01:46:29,869 WE LOOK FORWARD TO HELPING YOU 2272 01:46:29,869 --> 01:46:32,205 GET THE PUBLICATION OUT IN THE 2273 01:46:32,205 --> 01:46:34,407 SPRING TO SUMMER 2024. 2274 01:46:34,407 --> 01:46:35,275 SO THANK YOU AND I'LL TURN IT 2275 01:46:35,275 --> 01:46:41,214 OVER TO JOSH. 2276 01:46:41,214 --> 01:46:43,083 >> Josh: THANKS, SUSAN AND THANK 2277 01:46:43,083 --> 01:46:45,285 ALL OF TO YOUR NOMINATIONS. 2278 01:46:45,285 --> 01:46:47,454 WE HAVE A GRANT TOTAL OF 76 2279 01:46:47,454 --> 01:46:47,754 NOMINATIONS. 2280 01:46:47,754 --> 01:46:51,624 SO 76 CONTRIBUTIONS TO THE 2281 01:46:51,624 --> 01:46:52,993 SCIENTIFIC LITERATURE ON 2282 01:46:52,993 --> 01:46:57,063 ADVANCES RELEVANT TO AUTISM AND 2283 01:46:57,063 --> 01:47:01,968 I THINK VIRTUALLY ALL OF THEM 2284 01:47:01,968 --> 01:47:03,169 REPRESENT WONDERFUL 2285 01:47:03,169 --> 01:47:04,170 CONTRIBUTIONS TO THAT LITERATURE 2286 01:47:04,170 --> 01:47:08,341 AND OUR TASK HERE IS TO TRY TO 2287 01:47:08,341 --> 01:47:10,910 IDENTIFY 20 WE'LL COLLECTIVELY 2288 01:47:10,910 --> 01:47:14,047 PUT FORTH AS IS OUR 2289 01:47:14,047 --> 01:47:19,085 RESPONSIBILITY UNDER THE AUTISM 2290 01:47:19,085 --> 01:47:21,921 CARES ACT TO CONGRESS AN TO THE 2291 01:47:21,921 --> 01:47:22,722 PUBLIC OF BEING REPRESENTATIVE 2292 01:47:22,722 --> 01:47:24,424 OF THE KINDS OF ADVANCES THAT 2293 01:47:24,424 --> 01:47:25,325 WILL CHANGE THINGS ON THE GROUND 2294 01:47:25,325 --> 01:47:27,794 FOR INDIVIDUALS, FAMILIES AND 2295 01:47:27,794 --> 01:47:34,701 COMMUNITIES WITH AUTISM. 2296 01:47:34,701 --> 01:47:36,503 THE PROCESS THAT WE'RE TASKED 2297 01:47:36,503 --> 01:47:38,038 WITH TODAY IS NOT TO GO THROUGH 2298 01:47:38,038 --> 01:47:41,674 EACH AND EVERY ONE OF THEM WE 2299 01:47:41,674 --> 01:47:43,543 CAN'T TAKE IT THROUGH 76 IF WE 2300 01:47:43,543 --> 01:47:45,745 WENT TO DISCUSS EACH OF THEM BUT 2301 01:47:45,745 --> 01:47:47,213 IN EACH OF THE SEVEN CATEGORIES 2302 01:47:47,213 --> 01:47:49,382 IS GIVE YOU AN OPPORTUNITY TO DO 2303 01:47:49,382 --> 01:47:51,785 ONE OF THREE THINGS FOR ANY OF 2304 01:47:51,785 --> 01:47:54,454 THE NOMINATIONS IN THAT CATEGORY 2305 01:47:54,454 --> 01:47:55,755 THAT YOU FEEL IS NECESSARY TO 2306 01:47:55,755 --> 01:47:57,624 BRING UP TO THE GROUP. 2307 01:47:57,624 --> 01:48:01,027 WE'RE GOING ASSUME AT BASELINE 2308 01:48:01,027 --> 01:48:02,996 THAT YOU CAN READ AND GET A 2309 01:48:02,996 --> 01:48:04,798 SENSE OF THE TOPIC AND THE 2310 01:48:04,798 --> 01:48:06,032 IMPORTANCE AND THE QUALITY OF 2311 01:48:06,032 --> 01:48:09,002 THE WORK FROM THE ABSTRACT. 2312 01:48:09,002 --> 01:48:10,970 SO I WOULD LIKE TO SAY LET'S 2313 01:48:10,970 --> 01:48:12,238 HEAR ABOUT THREE DIFFERENT TYPES 2314 01:48:12,238 --> 01:48:13,006 OF CATEGORIES. 2315 01:48:13,006 --> 01:48:15,809 ONE IF THERE'S AN ARTICLE THAT 2316 01:48:15,809 --> 01:48:17,877 BASED UPON OUR CRITERIA, WHICH 2317 01:48:17,877 --> 01:48:19,879 IS THAT IT SHOULD BE AN 2318 01:48:19,879 --> 01:48:23,850 ADVANCEMENT THAT'S WORTHY OF 2319 01:48:23,850 --> 01:48:27,220 PUBLIC OF EXPRESSING THE PUBLIC, 2320 01:48:27,220 --> 01:48:29,255 IT SHOULD BE WELL POWERED WITH A 2321 01:48:29,255 --> 01:48:34,861 WELL DONE RIGOROUS STUDY AND 2322 01:48:34,861 --> 01:48:36,963 SHOULD BE PRIMARY RESEARCH NOT 2323 01:48:36,963 --> 01:48:38,364 REVIEWS OF OTHER LITERATURE. 2324 01:48:38,364 --> 01:48:41,534 THIS IS CRITERIA WE AGREED ON 2325 01:48:41,534 --> 01:48:43,036 THOUGH WE MADE EXCEPTIONS IN THE 2326 01:48:43,036 --> 01:48:43,303 PAST. 2327 01:48:43,303 --> 01:48:45,138 IF YOU FEEL WE SHOULD NOT BE 2328 01:48:45,138 --> 01:48:47,373 VOTING FOR IT, PLEASE RAISE THAT 2329 01:48:47,373 --> 01:48:48,007 WITH US TODAY. 2330 01:48:48,007 --> 01:48:51,611 IF THERE'S AN EXCEPTIONAL STUDY 2331 01:48:51,611 --> 01:48:54,047 IN HERE THEY'RE ALL EXCEPTIONAL 2332 01:48:54,047 --> 01:48:55,081 STUDIES BUT FOR WHATEVER REASON 2333 01:48:55,081 --> 01:48:56,516 YOU THINK IT'S IMPORTANT TO MAKE 2334 01:48:56,516 --> 01:48:57,951 A BRIEF COMMENT IN SUPPORT OF 2335 01:48:57,951 --> 01:49:03,423 THAT ARTICLE, PLEASE DO AND 2336 01:49:03,423 --> 01:49:05,825 SIMILARLY A BRIEF COMMENT 2337 01:49:05,825 --> 01:49:07,627 AGAINST INCLUSION IN THE FINAL 2338 01:49:07,627 --> 01:49:10,330 20 ON ANYTHING YOU FEEL AGAIN 2339 01:49:10,330 --> 01:49:11,030 ISN'T EXPRESSED WELL IN THE 2340 01:49:11,030 --> 01:49:12,932 ABSTRACT AND YOU NEED TO MAKE 2341 01:49:12,932 --> 01:49:13,266 THAT COMMENT. 2342 01:49:13,266 --> 01:49:15,935 SO LET ME OPEN IT UP FOR 2343 01:49:15,935 --> 01:49:19,706 COMMENTS ON THE BODY OF 2344 01:49:19,706 --> 01:49:21,608 NOMINATIONS IN THE FIRST 2345 01:49:21,608 --> 01:49:23,643 CATEGORY, SCREENING AND 2346 01:49:23,643 --> 01:49:26,546 DIAGNOSIS WHICH IS NOMINATIONS 2347 01:49:26,546 --> 01:49:29,782 1-8 ON PAGES 2-5 OF THE 2348 01:49:29,782 --> 01:49:30,150 DOCUMENT. 2349 01:49:30,150 --> 01:49:32,385 LET ME OPEN IT UP IF THERE'S ANY 2350 01:49:32,385 --> 01:49:33,419 INDIVIDUALS ON THE COMMITTEE WHO 2351 01:49:33,419 --> 01:49:35,121 WOULD LIKE TO MAKE A COMMENT IN 2352 01:49:35,121 --> 01:49:39,192 ONE OF THOSE THREE AREAS. 2353 01:49:39,192 --> 01:49:43,696 >> I HAVE A QUESTION FOR 2354 01:49:43,696 --> 01:49:45,431 DR. FRAZIER ABOUT -- 2355 01:49:45,431 --> 01:49:48,334 >> Josh: CLOSER TO THE MIC, 2356 01:49:48,334 --> 01:49:49,435 PLEASE. 2357 01:49:49,435 --> 01:49:54,474 >> DR. FRAZIER'S NOMINATION FOR 2358 01:49:54,474 --> 01:49:57,577 THE EYE TRACKING STUDY. 2359 01:49:57,577 --> 01:50:02,048 DO YOU HAVE AN EXAMPLE OF THE 2360 01:50:02,048 --> 01:50:02,482 POWER -- 2361 01:50:02,482 --> 01:50:04,984 >> IT WAS WELL POWERED. 2362 01:50:04,984 --> 01:50:08,221 THIS IS THE JAMA PUBLICATION. 2363 01:50:08,221 --> 01:50:10,557 >> Josh: SOCIAL, VISUAL 2364 01:50:10,557 --> 01:50:10,857 ENGAGEMENT. 2365 01:50:10,857 --> 01:50:12,158 >> THEY'VE BEEN DOING THIS A 2366 01:50:12,158 --> 01:50:12,525 LONG TIME. 2367 01:50:12,525 --> 01:50:18,031 IT'S VERY WELL POWERED IT'S A 2368 01:50:18,031 --> 01:50:21,434 PRE-REGISTERED STUDY. 2369 01:50:21,434 --> 01:50:24,604 THEY ARE DID EVERYTHING RIGHT IN 2370 01:50:24,604 --> 01:50:25,572 THIS WORK. 2371 01:50:25,572 --> 01:50:27,974 >> I'LL ADD TO SAY THERE WAS AN 2372 01:50:27,974 --> 01:50:29,175 ORIGINAL STUDY AND REPLICATION 2373 01:50:29,175 --> 01:50:30,877 STUDY AND THE REPLICATION STUDY 2374 01:50:30,877 --> 01:50:32,679 THERE WAS A VALIDATION STUDY 2375 01:50:32,679 --> 01:50:33,980 THAT WENT TO THE FDA ACROSS I 2376 01:50:33,980 --> 01:50:38,051 BELIEVE AT LEAST FOUR SITES AND 2377 01:50:38,051 --> 01:50:41,554 ALMOST 500 PEOPLE. 2378 01:50:41,554 --> 01:50:43,556 >> MY PROBLEM IS I DON'T KNOW 2379 01:50:43,556 --> 01:50:44,857 HOW MANY PEOPLE ARE IN THE SITE. 2380 01:50:44,857 --> 01:50:46,392 >> Josh: 199 ENROLLED CHILDREN. 2381 01:50:46,392 --> 01:50:47,594 >> THAT'S WHAT I WAS LOOKING 2382 01:50:47,594 --> 01:50:50,029 FOR. 2383 01:50:50,029 --> 01:50:55,435 THANK YOU. 2384 01:50:55,435 --> 01:50:59,973 THE PMIDs ARE CLICKABLE AND GOES 2385 01:50:59,973 --> 01:51:00,974 THROUGH THE ARTICLES. 2386 01:51:00,974 --> 01:51:03,109 THE ANSWER TO DENA'S QUESTION 2387 01:51:03,109 --> 01:51:03,977 AND OTHERS MAY BE ABLE TO BE 2388 01:51:03,977 --> 01:51:04,477 FOUND THAT WAY. 2389 01:51:04,477 --> 01:51:08,014 I WANT TO MAKE THE POINT THERE 2390 01:51:08,014 --> 01:51:09,582 ARE TWO ARTICLES HERE FROM 2391 01:51:09,582 --> 01:51:12,819 JONES, CLAIM AND RICHARDSON AND 2392 01:51:12,819 --> 01:51:13,953 LAST AUTHOR, QUINN. 2393 01:51:13,953 --> 01:51:17,857 THE ONE TOM NOMINATED IS NUMBER 2394 01:51:17,857 --> 01:51:20,493 3 AND THE MORE RECENT MORE 2395 01:51:20,493 --> 01:51:22,428 MATURE REPRESENTATION OF THE 2396 01:51:22,428 --> 01:51:22,962 PROJECT. 2397 01:51:22,962 --> 01:51:24,864 I WOULD FAVOR NUMBER 3 OVER 2398 01:51:24,864 --> 01:51:26,032 NUMBER 4 WHICH IS EARLIER WORK 2399 01:51:26,032 --> 01:51:28,468 FROM THE SAME GROUP. 2400 01:51:28,468 --> 01:51:31,070 >> Josh: I FEEL COMFORTABLE 2401 01:51:31,070 --> 01:51:33,072 WITHDRAWING NUMBER 4 NIH 2402 01:51:33,072 --> 01:51:34,874 NOMINATED IT AND NUMBER 3 YOU'RE 2403 01:51:34,874 --> 01:51:36,242 SEEING IS THE MORE COMPREHENSIVE 2404 01:51:36,242 --> 01:51:44,751 EXAMPLE OF THAT WORK. 2405 01:51:44,751 --> 01:51:46,786 WE'LL WITHDRAW NUMBER 4 AND 2406 01:51:46,786 --> 01:51:47,987 WON'T VOTE ON THAT ONE. 2407 01:51:47,987 --> 01:51:48,955 ANY OTHERS? 2408 01:51:48,955 --> 01:51:53,660 I WOULD LIKE TO MAKE A QUICK 2409 01:51:53,660 --> 01:51:55,528 COMMENT ABOUT FAM ET AL. NUMBER 2410 01:51:55,528 --> 01:51:56,696 7 ON THE LIST. 2411 01:51:56,696 --> 01:52:07,173 THIS IS OBVIOUSLY A REALLY 2412 01:52:08,775 --> 01:52:10,009 IMPORTANT ABOUT EQUITY AND UNDER 2413 01:52:10,009 --> 01:52:11,511 REPRESENTED GROUPS IN THE CARE 2414 01:52:11,511 --> 01:52:13,780 MODELS AND THE GET SET EARLY 2415 01:52:13,780 --> 01:52:15,748 PROGRAM IS AN EVIDENCE-BASED 2416 01:52:15,748 --> 01:52:17,884 APPROACH TO THE SCREEN, EVALUATE 2417 01:52:17,884 --> 01:52:20,753 AND TREAT MODEL WE HEARD ABOUT A 2418 01:52:20,753 --> 01:52:21,888 LITTLE BIT EARLIER TODAY AS 2419 01:52:21,888 --> 01:52:27,160 SOMETHING WE THINK CAN REALLY 2420 01:52:27,160 --> 01:52:29,095 CHANGE THE COURSE FOR TREATMENT 2421 01:52:29,095 --> 01:52:30,029 IN EARLY AUTISM AND HIGHLIGHT 2422 01:52:30,029 --> 01:52:31,964 THAT TO MAKE SURE WE UNDERSTAND 2423 01:52:31,964 --> 01:52:33,966 THE STUDY ADDRESSES MANY ISSUES 2424 01:52:33,966 --> 01:52:34,567 THAT HAVE BEEN RAISED BEFORE 2425 01:52:34,567 --> 01:52:44,944 THIS BODY IN THE PAST. 2426 01:52:46,612 --> 01:52:48,247 WE'LL MOVE ON TO THE BIOLOGY 2427 01:52:48,247 --> 01:52:54,921 SECTION FROM PAGE 5 TO 11. 2428 01:52:54,921 --> 01:53:02,362 NOMINATIONS 9 THROUGH THROUGH 2429 01:53:02,362 --> 01:53:03,996 21. 2430 01:53:03,996 --> 01:53:05,865 ANY COMMENTS HIGHLIGHTS, ANY YOU 2431 01:53:05,865 --> 01:53:06,366 SUGGEST MAY NEED TO BE 2432 01:53:06,366 --> 01:53:16,542 WITHDRAWN? 2433 01:53:22,014 --> 01:53:25,752 HEARING ON WE'LL MOVE ON TO THE 2434 01:53:25,752 --> 01:53:26,352 NEXT SECTION. 2435 01:53:26,352 --> 01:53:26,586 PAUL. 2436 01:53:26,586 --> 01:53:29,055 >> A NUMBER OF ARTICLES 2437 01:53:29,055 --> 01:53:30,823 REPRESENT WORK IN ANIMAL MODELS 2438 01:53:30,823 --> 01:53:32,492 AND OTHER EXPERIMENTAL MODELS 2439 01:53:32,492 --> 01:53:34,026 NOT IN PEOPLE. 2440 01:53:34,026 --> 01:53:36,662 I WONDER IF YOU, DR. DOR DON, 2441 01:53:36,662 --> 01:53:41,768 HAVE COMMENTS ON THE SUITABILITY 2442 01:53:41,768 --> 01:53:44,437 OF THOSE PAPERS FOR OUR VOTING. 2443 01:53:44,437 --> 01:53:49,675 >> THAT'S A GOOD POINT. 2444 01:53:49,675 --> 01:53:58,017 THERE'S A FEW IN THERE. 2445 01:53:58,017 --> 01:54:00,520 WHAT WE'RE DOING IN APPEALING TO 2446 01:54:00,520 --> 01:54:03,222 THE PUBLIC WE'RE NOT TRYING TO 2447 01:54:03,222 --> 01:54:04,957 APPEAL TO OTHER SCIENTISTS 2448 01:54:04,957 --> 01:54:06,826 SAYING THERE'S A HOT AREA OF 2449 01:54:06,826 --> 01:54:08,327 ADVANCEMENT OR COOL TECHNOLOGY. 2450 01:54:08,327 --> 01:54:10,129 WHAT I'M TRYING TO LOOK AT AS I 2451 01:54:10,129 --> 01:54:11,597 READ THESE NOMINATIONS IS WHICH 2452 01:54:11,597 --> 01:54:13,699 ONES ARE THE ONES WE SHOULD KNOW 2453 01:54:13,699 --> 01:54:18,805 ABOUT BECAUSE THEY HAVE THE 2454 01:54:18,805 --> 01:54:25,344 POTENTIAL FOR TRANSLATION? 2455 01:54:25,344 --> 01:54:28,014 SOMETIMES WE CAN GET TO 2456 01:54:28,014 --> 01:54:30,049 POTENTIAL TARGETS FOR TREATMENT 2457 01:54:30,049 --> 01:54:33,119 AND NOT TO BIAS YOU BUT IF I'M 2458 01:54:33,119 --> 01:54:38,524 LOOKING AT A HUMAN STUDY BY 2459 01:54:38,524 --> 01:54:41,327 SCHWARTZ ET AL. THIS IS A STEP 2460 01:54:41,327 --> 01:54:43,129 FORWARD IN BEING ABLE TO 2461 01:54:43,129 --> 01:54:44,163 POTENTIALLY DEVELOP BIOMARKERS 2462 01:54:44,163 --> 01:54:45,498 BUT IT DOESN'T HAVE THE ABILITY 2463 01:54:45,498 --> 01:54:51,938 TO THEN GO IN AND ASK WHAT ARE 2464 01:54:51,938 --> 01:54:53,206 THE MOLECULAR OR CELLULAR 2465 01:54:53,206 --> 01:54:54,474 ELEMENTS WE CAN TARGET WITH A 2466 01:54:54,474 --> 01:55:00,813 THERAPY BE IT A DRUG OR 2467 01:55:00,813 --> 01:55:04,350 STIMULATION PARADIGM. 2468 01:55:04,350 --> 01:55:06,719 I'D LOOK AT THE ABSTRACTS AND 2469 01:55:06,719 --> 01:55:08,988 TRYING TO SAY WHICH ONES HAVE 2470 01:55:08,988 --> 01:55:11,624 THE POTENTIAL TO DEVELOP INTO 2471 01:55:11,624 --> 01:55:13,192 SOMETHING THAT WOULD BE OF USE 2472 01:55:13,192 --> 01:55:17,630 AND THAT'S HOW I WOULD TRY TO 2473 01:55:17,630 --> 01:55:19,365 EVALUATE IT AND THAT'S THROUGH 2474 01:55:19,365 --> 01:55:20,800 ANIMAL OR HUMAN WORK. 2475 01:55:20,800 --> 01:55:27,440 THAT'S MY BIAS. 2476 01:55:27,440 --> 01:55:32,979 OTHERS? 2477 01:55:43,923 --> 01:55:45,458 >> IF THERE'S NO OTHER QUESTIONS 2478 01:55:45,458 --> 01:55:47,159 OR COMMENTS ON THE BIOLOGY 2479 01:55:47,159 --> 01:55:47,393 SECTION. 2480 01:55:47,393 --> 01:55:49,195 GO AHEAD, SUSAN. 2481 01:55:49,195 --> 01:55:51,297 >> Susan: I WANT TO FOLLOW UP ON 2482 01:55:51,297 --> 01:55:53,099 THIS AND GLAD PAUL RAISED IT. 2483 01:55:53,099 --> 01:55:55,301 WE NEED TO LOOK CAREFULLY AT THE 2484 01:55:55,301 --> 01:56:05,578 ANIMAL STUDIES. 2485 01:56:08,147 --> 01:56:11,484 AND LOOKING AT BEHAVIORS IN THE 2486 01:56:11,484 --> 01:56:13,286 MICE THAT MIMIC BEHAVIORS IN 2487 01:56:13,286 --> 01:56:17,089 CHILDREN OR INDIVIDUALS THAT ARE 2488 01:56:17,089 --> 01:56:17,890 AUTISTIC. 2489 01:56:17,890 --> 01:56:20,793 WE NEED TO TAKE A STEP THAT THAT 2490 01:56:20,793 --> 01:56:22,862 WORK ISN'T IMPORTANT BUT IS IT A 2491 01:56:22,862 --> 01:56:25,164 FINDING MOVING THE FIELD IN A 2492 01:56:25,164 --> 01:56:26,032 DIFFERENT DIRECTION AND I WOULD 2493 01:56:26,032 --> 01:56:28,034 ARGUE IF YOU'RE LOOKING AT 2494 01:56:28,034 --> 01:56:30,937 BEHAVIORS YOU'RE TRYING TO FIND 2495 01:56:30,937 --> 01:56:32,905 IN RODENT MODELS WE KNOW ARE 2496 01:56:32,905 --> 01:56:34,040 PRESENT IN AUTISTIC INDIVIDUALS 2497 01:56:34,040 --> 01:56:36,108 THAT MAY NOT BE ONE OF THE ONES 2498 01:56:36,108 --> 01:56:38,044 WE WANT TO HIGHLIGHT ON OUR LIST 2499 01:56:38,044 --> 01:56:41,914 FOR THAT. 2500 01:56:41,914 --> 01:56:44,784 THANK YOU, SUSAN I APPRECIATE 2501 01:56:44,784 --> 01:56:45,451 THAT. 2502 01:56:45,451 --> 01:56:48,754 THIS IS THE CHEN ET AL. ARTICLE 2503 01:56:48,754 --> 01:56:50,189 ON AVERSIVE RESPONSES TO TOUCH 2504 01:56:50,189 --> 01:56:58,931 IN MICE. 2505 01:56:58,931 --> 01:57:00,967 I AGREE THAT BEHAVIOR IN A MOUSE 2506 01:57:00,967 --> 01:57:04,003 IS DIFFERENT THAN A HUMAN AND 2507 01:57:04,003 --> 01:57:06,038 NEED LEVELS OF TRANSABILITY TO 2508 01:57:06,038 --> 01:57:08,174 BE ABLE TO INTERPRET MUCH FROM 2509 01:57:08,174 --> 01:57:08,741 THE STUDIES. 2510 01:57:08,741 --> 01:57:12,144 THE STRENGTH IS THE USE OF IN 2511 01:57:12,144 --> 01:57:14,814 THIS CASE A BONA FIDE MUTATION 2512 01:57:14,814 --> 01:57:18,484 WHICH WE KNOW IN HUMANS LEADS TO 2513 01:57:18,484 --> 01:57:20,119 INCREASE RISK FOR AUTISM THE 2514 01:57:20,119 --> 01:57:20,820 FRAGILE X MUTATION. 2515 01:57:20,820 --> 01:57:23,489 THE RELIANCE ON A BEHAVIORAL 2516 01:57:23,489 --> 01:57:25,091 READOUT WHICH CAN BE CHALLENGING 2517 01:57:25,091 --> 01:57:29,428 TO TRANSLATE FROM RODENTS TO 2518 01:57:29,428 --> 01:57:31,197 HUMANS SOCIAL TOUCH MEANS 2519 01:57:31,197 --> 01:57:31,931 SOMETHING POTENTIALLY VERY 2520 01:57:31,931 --> 01:57:34,600 DIFFERENT IN A MOUSE THAN IN A 2521 01:57:34,600 --> 01:57:38,037 HUMAN BEING AND WE HAVE TO 2522 01:57:38,037 --> 01:57:39,672 REMEMBER THAT. 2523 01:57:39,672 --> 01:57:41,007 THANK YOU FOR THAT DISCUSSION. 2524 01:57:41,007 --> 01:57:42,508 AS YOU GO THROUGH THE 2525 01:57:42,508 --> 01:57:43,709 NOMINATIONS YOU CAN KEEP THESE 2526 01:57:43,709 --> 01:57:46,045 IDEAS IN MIND WHETHER YOU WISH 2527 01:57:46,045 --> 01:57:53,085 TO ENDORSE ANY OF THOSE STUDIES 2528 01:57:53,085 --> 01:57:55,187 AND MOVE ON TO THE NEXT AREA OF 2529 01:57:55,187 --> 01:57:58,557 GENETIC AND ENVIRONMENTAL RISK 2530 01:57:58,557 --> 01:58:01,694 FACTORS FOR -- IT'S RISK AND 2531 01:58:01,694 --> 01:58:04,997 RESILIENCE WHICH IS ON PAGES 11 2532 01:58:04,997 --> 01:58:10,069 TO 14 COMPRISING NUMBERS 22 2533 01:58:10,069 --> 01:58:15,007 THROUGH 28. 2534 01:58:15,007 --> 01:58:17,109 ANY COMMENTS OR QUESTIONS ON ANY 2535 01:58:17,109 --> 01:58:27,486 OF THOSE NOMINATIONS. 2536 01:58:28,487 --> 01:58:31,524 >> I HAVEN'T HAD TIME TO GO 2537 01:58:31,524 --> 01:58:32,358 THROUGH THEM THOROUGHLY BUT I 2538 01:58:32,358 --> 01:58:33,492 HAVE CONCERN SOME OF THESE 2539 01:58:33,492 --> 01:58:39,265 PROBABLY SHOULD NOT BE PROMOTED 2540 01:58:39,265 --> 01:58:44,070 IN THIS PACKAGE. 2541 01:58:44,070 --> 01:58:46,372 EVEN JUST THE NUMBER 22 THE PFAS 2542 01:58:46,372 --> 01:58:48,307 ONE EXCELLENT RESEARCH GROUP AND 2543 01:58:48,307 --> 01:58:52,978 THEIR FINDINGS ARE SORT OF -- 2544 01:58:52,978 --> 01:58:55,581 THEY CLEARLY SAY THEY'RE A BIT 2545 01:58:55,581 --> 01:58:55,881 EQUIVOCAL. 2546 01:58:55,881 --> 01:58:57,183 IN THIS AREA ESPECIALLY WHEN 2547 01:58:57,183 --> 01:58:59,251 WE'RE TALKING ABOUT SOME OF THE 2548 01:58:59,251 --> 01:58:59,985 ENVIRONMENTAL EXPOSURES AND 2549 01:58:59,985 --> 01:59:02,021 CHEMICAL ONES IN PARTICULAR AND 2550 01:59:02,021 --> 01:59:07,660 THE PM AND THINGS, SINCE I'M NOT 2551 01:59:07,660 --> 01:59:10,830 SURE HOW IT FORMS PEOPLE'S 2552 01:59:10,830 --> 01:59:12,698 DECISIONS OR POLICIES ESPECIALLY 2553 01:59:12,698 --> 01:59:22,441 WHEN THE FINDINGS ARE NOT SO 2554 01:59:22,441 --> 01:59:24,977 CLEAR, I GUESS I JUST WANT TO 2555 01:59:24,977 --> 01:59:26,679 SORT OF HAVE THAT IN THE FRONT 2556 01:59:26,679 --> 01:59:29,281 OF PEOPLE'S MINDS AS THEY'RE 2557 01:59:29,281 --> 01:59:32,918 LOOKING AT THESE AND I'LL LOOK 2558 01:59:32,918 --> 01:59:33,519 MORE CLOSELY. 2559 01:59:33,519 --> 01:59:34,186 >> Josh: THANK YOU. 2560 01:59:34,186 --> 01:59:35,855 I'M LOOKING AT THE ABSTRACT 2561 01:59:35,855 --> 01:59:38,324 RIGHT NOW AS QUOTED IN HERE, NOT 2562 01:59:38,324 --> 01:59:40,192 THE ABSTRACT, THE DESCRIPTION OF 2563 01:59:40,192 --> 01:59:42,461 IT AND IT DOES SOUND EQUIVOCAL. 2564 01:59:42,461 --> 01:59:45,064 BLOOD LEVELS WERE NOT STRONGLY 2565 01:59:45,064 --> 01:59:46,732 LINKED TO CHANGES IN SRS 2566 01:59:46,732 --> 01:59:49,502 SCORE -- THE SEX DIFFERENCES IN 2567 01:59:49,502 --> 01:59:52,538 EXPOSURE WAS NOT ROBUST AND THE 2568 01:59:52,538 --> 01:59:58,110 CONCLUSION -- THE NEED FOR 2569 01:59:58,110 --> 01:59:59,578 FURTHER INCLUSION COULD SUGGEST 2570 01:59:59,578 --> 02:00:04,750 IT'S NOT READY FOR PRIME TIME. 2571 02:00:04,750 --> 02:00:07,119 >> THIS HAS TO DO WITH THE 2572 02:00:07,119 --> 02:00:08,954 QUESTION RAISED. 2573 02:00:08,954 --> 02:00:12,691 NUMBER ONE, WE GET CAUGHT UP -- 2574 02:00:12,691 --> 02:00:16,662 I WANT TO WARN US AGAINST VOTING 2575 02:00:16,662 --> 02:00:19,031 DOWN NEGATIVE FINDINGS. 2576 02:00:19,031 --> 02:00:19,799 BESIDES THIS. 2577 02:00:19,799 --> 02:00:21,233 THIS CAN STAND ON ITS OWN BUT 2578 02:00:21,233 --> 02:00:25,137 HAS TO DO WITH EQUIVOCAL 2579 02:00:25,137 --> 02:00:25,805 FINDINGS. 2580 02:00:25,805 --> 02:00:26,839 THEY DIDN'T FIND AN EFFECT. 2581 02:00:26,839 --> 02:00:28,607 DOES THAT MAKE IT NON-IMPORTANT 2582 02:00:28,607 --> 02:00:31,977 BECAUSE IT WASN'T A POSITIVE 2583 02:00:31,977 --> 02:00:32,311 EFFECT. 2584 02:00:32,311 --> 02:00:34,814 IT WAS LACK OF EFFECT. 2585 02:00:34,814 --> 02:00:36,248 WE NEED TO THINK ABOUT THAT AND 2586 02:00:36,248 --> 02:00:38,651 I KNOW IF HER CONCERNS WERE MORE 2587 02:00:38,651 --> 02:00:43,155 BECAUSE THE OUTCOME WAS AUTISTIC 2588 02:00:43,155 --> 02:00:45,324 TRAITS NOT NECESSARY AN AUTISM 2589 02:00:45,324 --> 02:00:45,891 DIAGNOSIS PER SE. 2590 02:00:45,891 --> 02:00:47,793 MAYBE YOU CAN PROVIDE GUIDANCE 2591 02:00:47,793 --> 02:00:49,495 ABOUT IS THERE A LINE OR DO WE 2592 02:00:49,495 --> 02:00:52,064 USE OUR OWN JUDGMENT ABOUT THE 2593 02:00:52,064 --> 02:00:54,266 LINE BETWEEN AUTISTIC TRAITS AND 2594 02:00:54,266 --> 02:00:54,533 DIAGNOSIS? 2595 02:00:54,533 --> 02:00:56,635 >> IT'S A GREAT QUESTION. 2596 02:00:56,635 --> 02:00:57,203 WE'RE TRYING TO DETERMINE 2597 02:00:57,203 --> 02:01:01,207 WHETHER WE WANT TO REJECT THIS 2598 02:01:01,207 --> 02:01:03,409 OUTRIGHT OR NOW YOU HEARD THINGS 2599 02:01:03,409 --> 02:01:06,645 AND MAYBE IT'S A RECOMMENDATION 2600 02:01:06,645 --> 02:01:08,614 THAT YOU NOT VOTE BUT MAKE YOUR 2601 02:01:08,614 --> 02:01:13,719 OWN MIND UP AND WE'RE TRYING TO 2602 02:01:13,719 --> 02:01:15,588 FIGURING THAT OUT JUST NOW AND I 2603 02:01:15,588 --> 02:01:18,490 AGREE 100% ON NEGATIVE FINDING. 2604 02:01:18,490 --> 02:01:19,592 THERE'S IMPORTANT NEGATIVE 2605 02:01:19,592 --> 02:01:22,027 FINDINGS IN THIS FIELD THAT CAN 2606 02:01:22,027 --> 02:01:24,330 HELP REASSURE PEOPLE AND GUIDE 2607 02:01:24,330 --> 02:01:25,731 POLICY DECISION MAKING. 2608 02:01:25,731 --> 02:01:27,399 I THINK THE COMMENT AND QUESTION 2609 02:01:27,399 --> 02:01:29,468 HERE IS WHETHER THIS IS A 2610 02:01:29,468 --> 02:01:31,737 NEGATIVE FINDING OR WHAT WE 2611 02:01:31,737 --> 02:01:33,339 COULD CALL AN EQUIVOCAL FINDING 2612 02:01:33,339 --> 02:01:36,876 MEANING A FINDING WE CANNOT MAKE 2613 02:01:36,876 --> 02:01:38,677 CONCLUSIONS FROM AND WHILE THOSE 2614 02:01:38,677 --> 02:01:40,379 FINDINGS ARE IMPORTANT IN THE 2615 02:01:40,379 --> 02:01:42,481 SENSE THAT IT DOES SAY WE NEED 2616 02:01:42,481 --> 02:01:44,116 MORE RESEARCH, DO WE WANT TO PUT 2617 02:01:44,116 --> 02:01:47,453 ONE OF THOSE EQUIVOCAL FINDINGS, 2618 02:01:47,453 --> 02:01:49,588 ONE WE CAN'T MAKE INCLUSIONS 2619 02:01:49,588 --> 02:01:52,892 FROM FORWARD AS AN ADVANCE AS 2620 02:01:52,892 --> 02:01:55,861 OPPOSED TO RECOGNIZING THE 2621 02:01:55,861 --> 02:01:58,831 IMPORTANT CONTRIBUTION WE'RE NOT 2622 02:01:58,831 --> 02:01:59,465 READY YET. 2623 02:01:59,465 --> 02:02:00,900 WERE YOU RAISING YOUR HAND? 2624 02:02:00,900 --> 02:02:02,034 >> AS SOMEONE THAT WORKS WITH 2625 02:02:02,034 --> 02:02:12,544 THE ECHO GROUP I CAN SAY THEY 2626 02:02:18,117 --> 02:02:19,418 DON'T WANT TO LOOK AT RISK 2627 02:02:19,418 --> 02:02:24,456 FACTORS FOR AUTISM BUT LOOK AT 2628 02:02:24,456 --> 02:02:26,025 AUTISM SYMPTOMOLOGY AND 2629 02:02:26,025 --> 02:02:26,792 PURPOSELY LOOKED AT AUTISM 2630 02:02:26,792 --> 02:02:31,030 TRAITS IN AN EFFORT TO WORK 2631 02:02:31,030 --> 02:02:34,033 COLLABORATIVELY WITH THE AUTISM 2632 02:02:34,033 --> 02:02:40,072 COMMUNITY. 2633 02:02:40,072 --> 02:02:42,041 WE'RE TRYING TO LOOK AT 2634 02:02:42,041 --> 02:02:43,943 SYMPTOMOLOGY INSTEAD BECAUSE 2635 02:02:43,943 --> 02:02:46,045 THAT'S BEEN REQUESTED FROM THE 2636 02:02:46,045 --> 02:02:56,221 COMMUNITY. 2637 02:03:01,560 --> 02:03:05,564 >> Josh: I'M NOT HEARING A 2638 02:03:05,564 --> 02:03:07,633 STRONG CONSENSUS WE SHOULD 2639 02:03:07,633 --> 02:03:11,537 REMOVE THIS. 2640 02:03:11,537 --> 02:03:13,038 YOU'VE ALL HEARD SOME CONCERNS 2641 02:03:13,038 --> 02:03:16,742 AND TAKE THAT INTO ACCOUNT TO 2642 02:03:16,742 --> 02:03:19,044 MAKE YOUR DECISION WHICH TO VOTE 2643 02:03:19,044 --> 02:03:19,411 FOR. 2644 02:03:19,411 --> 02:03:26,051 SINCE NICHD NOMINATED IT, 2645 02:03:26,051 --> 02:03:29,922 WHETHER ALICE GOW HAS ANYTHING 2646 02:03:29,922 --> 02:03:31,724 TO SAY ABOUT THE ARTICLE AIMS 2647 02:03:31,724 --> 02:03:41,800 22. 2648 02:03:54,179 --> 02:03:57,249 >> IT'S A WELL POWERED STUDY AND 2649 02:03:57,249 --> 02:03:58,917 BROUGHT UP FOR THE IACC 2650 02:03:58,917 --> 02:04:00,219 CONSIDERATION. 2651 02:04:00,219 --> 02:04:01,820 I DIDN'T UNDERSTAND THE ISSUES 2652 02:04:01,820 --> 02:04:12,264 RAISED AND DISCUSSED NOW. 2653 02:04:15,334 --> 02:04:16,402 >> NOTHING TO ADD. 2654 02:04:16,402 --> 02:04:20,472 >> Josh: WE'LL MOVE ON TO THE 2655 02:04:20,472 --> 02:04:25,177 NEXT SECTION. 2656 02:04:25,177 --> 02:04:26,211 MORENIKE HAS TO COMMENTS. 2657 02:04:26,211 --> 02:04:28,080 WE'RE NOT MICE AND I APPRECIATE 2658 02:04:28,080 --> 02:04:31,717 THE TERM USE OF THE TERM TRAITS 2659 02:04:31,717 --> 02:04:33,318 AND INTENTIONAL EFFORTS TO BE 2660 02:04:33,318 --> 02:04:35,721 RESPECTFUL IN WORDING. 2661 02:04:35,721 --> 02:04:36,422 >> Josh: THANK YOU. 2662 02:04:36,422 --> 02:04:36,822 OKAY. 2663 02:04:36,822 --> 02:04:38,357 I AGREE WITH BOTH THOSE COMMENTS 2664 02:04:38,357 --> 02:04:39,591 AS WELL. 2665 02:04:39,591 --> 02:04:45,931 WE WILL MOVE ON THEN TO THE NEXT 2666 02:04:45,931 --> 02:04:49,535 SECTION WHICH IS ON 2667 02:04:49,535 --> 02:04:52,037 INTERVENTIONS WHICH IS LOCATED 2668 02:04:52,037 --> 02:04:53,639 ON PAGE 14 THROUGH 17 OF THE 2669 02:04:53,639 --> 02:05:00,012 DOCUMENT YOU RECEIVED. 2670 02:05:00,012 --> 02:05:02,714 NOMINATIONS 29 THROUGH -- I 2671 02:05:02,714 --> 02:05:03,849 CAN'T FIND PAGE 17 -- THROUGH 2672 02:05:03,849 --> 02:05:04,116 36. 2673 02:05:04,116 --> 02:05:05,851 ANY QUESTIONS OR COMMENTS? 2674 02:05:05,851 --> 02:05:09,588 JENNY, START US OFF. 2675 02:05:09,588 --> 02:05:17,930 >> HI, FOR NUMBER 30, THE 2676 02:05:17,930 --> 02:05:21,100 INTERVENTION STUDY DOESN'T LOOK 2677 02:05:21,100 --> 02:05:23,068 LIKE IT'S SPECIFICALLY TO AUTISM 2678 02:05:23,068 --> 02:05:25,304 AND NEURAL DEVELOPMENT 2679 02:05:25,304 --> 02:05:25,971 DISABILITIES IN GENERAL THOUGH 2680 02:05:25,971 --> 02:05:28,173 AUTISM WAS MENTIONED BUT I'M 2681 02:05:28,173 --> 02:05:29,141 WONDERING IF THE COMMITTEE FEELS 2682 02:05:29,141 --> 02:05:31,043 THE STUDY IS JUST TOO BROAD AND 2683 02:05:31,043 --> 02:05:41,453 NOT SPECIFICALLY AUTISM. 2684 02:05:42,621 --> 02:05:45,090 >> Josh: ANY COMMENTS OR 2685 02:05:45,090 --> 02:05:49,394 RESPONSES TO JENNY'S POINT? 2686 02:05:49,394 --> 02:05:50,696 ARE YOU SUGGESTING WE MIGHT WANT 2687 02:05:50,696 --> 02:05:53,265 TO WITHDRAW IT OR JUST MAKING 2688 02:05:53,265 --> 02:05:53,632 THE CASE? 2689 02:05:53,632 --> 02:05:55,501 SO THERE'S A SUGGESTION WE 2690 02:05:55,501 --> 02:05:57,569 SHOULD WITHDRAW IT BECAUSE IT'S 2691 02:05:57,569 --> 02:05:58,704 NOT SPECIFIC TO AUTISM. 2692 02:05:58,704 --> 02:06:02,107 ARE THERE OBJECTION TO 2693 02:06:02,107 --> 02:06:11,583 WITHDRAWING IT? 2694 02:06:11,583 --> 02:06:14,486 >> I DON'T HAVE A SPECIFIC 2695 02:06:14,486 --> 02:06:16,188 OBJECTION TO WITHDRAWING IT. 2696 02:06:16,188 --> 02:06:18,056 I'M REALLY GLAD JENNY BROUGHT 2697 02:06:18,056 --> 02:06:19,291 THIS UP BECAUSE I THINK IT'S 2698 02:06:19,291 --> 02:06:22,494 MORE OF A POLICY ISSUE FOR US TO 2699 02:06:22,494 --> 02:06:22,761 CONSIDER. 2700 02:06:22,761 --> 02:06:27,533 I DO WANT TO JUST POINT OUT THAT 2701 02:06:27,533 --> 02:06:30,068 THE FOCUS OF THE ARTICLE IS ONE 2702 02:06:30,068 --> 02:06:33,805 THAT IS POTENTIALLY VERY 2703 02:06:33,805 --> 02:06:39,444 PRACTICAL ADVICE FOR THE PUBLIC 2704 02:06:39,444 --> 02:06:43,015 REGARDING DIET AND IT'S EFFECT 2705 02:06:43,015 --> 02:06:45,584 ON NEURODIVERGENT POPULATIONS 2706 02:06:45,584 --> 02:06:47,819 BUT IF WE HAVE A POLICY OF 2707 02:06:47,819 --> 02:06:48,787 CHOOSING ARTICLES FOR THIS 2708 02:06:48,787 --> 02:06:52,624 BRIEFING THAT ARE ONLY GOING TO 2709 02:06:52,624 --> 02:06:55,694 BE AT THAT WE SHOULD KEEP THAT 2710 02:06:55,694 --> 02:06:57,029 IN MIND WHEN WE ARE RECOMMENDING 2711 02:06:57,029 --> 02:06:57,729 THEM. 2712 02:06:57,729 --> 02:07:02,968 IF WE DON'T HAVE THAT POLICY 2713 02:07:02,968 --> 02:07:05,971 THEN I THINK THAT'S A DIFFERENT 2714 02:07:05,971 --> 02:07:06,939 QUESTION. 2715 02:07:06,939 --> 02:07:09,074 >> I DON'T THINK WE EXPRESSED 2716 02:07:09,074 --> 02:07:09,808 THAT IN THE PAST. 2717 02:07:09,808 --> 02:07:11,076 >> Susan: WE SPOKE OF TRYING TO 2718 02:07:11,076 --> 02:07:14,046 STICK WITH AUTISM BECAUSE IF WE 2719 02:07:14,046 --> 02:07:15,547 START CONSIDERING ALL NEURAL 2720 02:07:15,547 --> 02:07:16,148 DEVELOPMENT DISABILITIES IT 2721 02:07:16,148 --> 02:07:18,083 WOULD POTENTIALLY OPEN IT UP TO 2722 02:07:18,083 --> 02:07:20,452 SOMETHING VERY BROAD AND WOULD 2723 02:07:20,452 --> 02:07:22,020 NOT BE SPECIFIC TO AUTISM SO 2724 02:07:22,020 --> 02:07:23,121 WE'VE HAD THOSE DISCUSSIONS. 2725 02:07:23,121 --> 02:07:24,523 MAYBE NOT IN THIS ITERATION OF 2726 02:07:24,523 --> 02:07:28,026 THE COMMITTEE BUT IT'S HAPPENED 2727 02:07:28,026 --> 02:07:28,360 BEFORE. 2728 02:07:28,360 --> 02:07:30,796 >> Josh: I MAY SUGGEST WE LEAVE 2729 02:07:30,796 --> 02:07:32,397 THIS IN WITH THE RECOGNITION AND 2730 02:07:32,397 --> 02:07:34,032 POINT YOU'VE MADE IT IS NOT 2731 02:07:34,032 --> 02:07:37,269 SPECIFIC TO AUTISM AND INCLUDES 2732 02:07:37,269 --> 02:07:39,004 IN PARTICULAR ADHD AS WELL AS 2733 02:07:39,004 --> 02:07:40,472 OTHER DEVELOPMENT DISABILITIES 2734 02:07:40,472 --> 02:07:42,708 WHICH MAY MAKE THE CONCLUSIONS 2735 02:07:42,708 --> 02:07:44,309 LESS BROAD AND IF YOU'RE 2736 02:07:44,309 --> 02:07:46,044 CONSIDERING VOTING FOR IT YOU 2737 02:07:46,044 --> 02:07:47,980 MAY LOOK AND SEE WHETHER THERE 2738 02:07:47,980 --> 02:07:50,015 WAS EVIDENCE THE SUBSET OF 2739 02:07:50,015 --> 02:07:51,984 INDIVIDUALS -- THE RISK OF 2740 02:07:51,984 --> 02:07:53,819 AUTISM WAS LOWERED BY THE DIET 2741 02:07:53,819 --> 02:07:55,954 OR NOT AND I'M GUESSING WE 2742 02:07:55,954 --> 02:07:58,423 PROBABLY CAN'T MAKE THAT COULD 2743 02:07:58,423 --> 02:07:59,591 BE COLLUSION BUT I HAVEN'T READ 2744 02:07:59,591 --> 02:08:01,493 IT MYSELF TO KNOW. 2745 02:08:01,493 --> 02:08:04,730 >> I LOOKED AT THE PAPER AND 2746 02:08:04,730 --> 02:08:06,832 THEY DO PARS OUT THE RESULT ARE 2747 02:08:06,832 --> 02:08:10,068 BY AUTISM AND ADHD AND OTHER 2748 02:08:10,068 --> 02:08:12,471 NEURAL DEVELOPMENT DISABILITIES. 2749 02:08:12,471 --> 02:08:13,205 >> Josh: CLOSER. 2750 02:08:13,205 --> 02:08:20,245 >> THE DETAILS IN THE PAPER ARE 2751 02:08:20,245 --> 02:08:22,080 STRATIFIED BY SPECIFIC NEURAL 2752 02:08:22,080 --> 02:08:22,881 DEVELOPMENT DISORDERS INCLUDING 2753 02:08:22,881 --> 02:08:23,148 AUTISM. 2754 02:08:23,148 --> 02:08:24,549 THE DETAILS ARE IN THE PAPER. 2755 02:08:24,549 --> 02:08:27,185 NOT IN THIS DESCRIPTION OR IN 2756 02:08:27,185 --> 02:08:28,086 THE ABSTRACT BUT IT'S IN THE 2757 02:08:28,086 --> 02:08:30,355 PAPER. 2758 02:08:30,355 --> 02:08:31,690 JUST IN MY GLANCE. 2759 02:08:31,690 --> 02:08:32,824 >> Josh: AND DO YOU RECALL 2760 02:08:32,824 --> 02:08:35,460 WHETHER THE EFFECT WAS SIMILAR 2761 02:08:35,460 --> 02:08:38,030 OR STRONGER, WEAKER IN THE 2762 02:08:38,030 --> 02:08:41,300 AUTISM SUB GROUP 2763 02:08:41,300 --> 02:08:46,038 >> I CAN SCROLL DOWN AND LOOK AT 2764 02:08:46,038 --> 02:08:56,148 TELL. 2765 02:09:02,287 --> 02:09:04,589 IT LOOKS LIKE NO ASSOCIATION. 2766 02:09:04,589 --> 02:09:07,926 >> Josh: IF THE GROUP THAT 2767 02:09:07,926 --> 02:09:09,561 NOMINATED IT WOULD LIKE TO SPEAK 2768 02:09:09,561 --> 02:09:09,828 UP. 2769 02:09:09,828 --> 02:09:14,499 >> NOTHING TO ADD BUT IN GENERAL 2770 02:09:14,499 --> 02:09:18,036 IT'S GREAT THE GROUP'S GOTTEN 2771 02:09:18,036 --> 02:09:19,671 MORE ARTICLE AND PROBABLY MAKING 2772 02:09:19,671 --> 02:09:22,040 IT HARDER SO IF THERE ARE MORE 2773 02:09:22,040 --> 02:09:23,542 COMMON THINGS WE SHOULD CONSIDER 2774 02:09:23,542 --> 02:09:27,612 AS WE'RE NOMINATING THAT COULD 2775 02:09:27,612 --> 02:09:29,381 BE HELPFUL TOO WHETHER SAMPLE 2776 02:09:29,381 --> 02:09:30,449 SIZE OR SPECIFICITY TO AUTISM 2777 02:09:30,449 --> 02:09:31,783 AND THERE'S A RANGE OF THINGS 2778 02:09:31,783 --> 02:09:33,352 THAT COULD BE HELPFUL TO 2779 02:09:33,352 --> 02:09:33,885 CONSIDER. 2780 02:09:33,885 --> 02:09:35,087 >> Josh: THAT'S A GOOD 2781 02:09:35,087 --> 02:09:35,387 SUGGESTION. 2782 02:09:35,387 --> 02:09:45,797 WE'LL WORK ON SOME THAT. 2783 02:09:54,339 --> 02:10:00,312 >> DINAH CAN DO IT FIRST. 2784 02:10:00,312 --> 02:10:02,314 >> I HAD A COMMENT ON THE 2785 02:10:02,314 --> 02:10:03,982 HATFIELD STUDY NUMBER 33. 2786 02:10:03,982 --> 02:10:08,687 IT'S SUPER COOL LOOKING AT 2787 02:10:08,687 --> 02:10:09,988 EXERCISING INTERVENING TO 2788 02:10:09,988 --> 02:10:11,256 INCREASE PHYSICAL HEALTH AND 2789 02:10:11,256 --> 02:10:13,291 THERE'S OF IT'S A PRELIMINARY 2790 02:10:13,291 --> 02:10:14,659 STUDY AND THE END IS 5. 2791 02:10:14,659 --> 02:10:17,629 THOUGH I AM REALLY EXCITED TO 2792 02:10:17,629 --> 02:10:19,131 SEE WHERE THIS GOES I'M NOT SURE 2793 02:10:19,131 --> 02:10:21,400 THIS STUDY IS DEFINITIVE ENOUGH 2794 02:10:21,400 --> 02:10:22,100 TO BE ON THE LIST. 2795 02:10:22,100 --> 02:10:23,735 I WANTED TO KNOW WHAT EVERYTHING 2796 02:10:23,735 --> 02:10:24,970 ELSE THOUGHT. 2797 02:10:24,970 --> 02:10:34,646 THIS IS NUMBER 33 HATFIELD BETA 2798 02:10:34,646 --> 02:10:35,213 TEST. 2799 02:10:35,213 --> 02:10:45,724 >> Josh: ANY COMMENTS ON THAT? 2800 02:10:51,663 --> 02:10:56,101 >> IT MAY BE HELPFUL TO HAVE THE 2801 02:10:56,101 --> 02:11:05,977 CRITERIA TO REVIEW THESE VAST 2802 02:11:05,977 --> 02:11:08,213 MAJORITY ARE NOT RESEARCHERS OR 2803 02:11:08,213 --> 02:11:10,382 AT TINY UNIVERSITIES WITH A 2804 02:11:10,382 --> 02:11:12,350 SMALL LIBRARY AND WE NEED TO 2805 02:11:12,350 --> 02:11:14,085 KNOW WHAT THE BREAKDOWN WAS BY 2806 02:11:14,085 --> 02:11:16,087 GENDER IF WE HAVE IT. 2807 02:11:16,087 --> 02:11:18,223 WHATEVER THE SMALL CRITERIA ARE. 2808 02:11:18,223 --> 02:11:20,358 THIS ONE WHAT'S MISSING IS IS 2809 02:11:20,358 --> 02:11:20,892 THE OUTCOME. 2810 02:11:20,892 --> 02:11:22,194 THAT'S PROBABLY IN THE ARTICLE 2811 02:11:22,194 --> 02:11:25,363 BUT NOT HERE. 2812 02:11:25,363 --> 02:11:27,632 FOR THOSE WHO DON'T HAVE LIBRARY 2813 02:11:27,632 --> 02:11:31,336 ACCESS, THAT'S A BARRIER. 2814 02:11:31,336 --> 02:11:33,572 THAT WAS MY CONCERN ALONG WITH 2815 02:11:33,572 --> 02:11:35,373 JULIE'S ABOUT THE SAMPLE SIZE. 2816 02:11:35,373 --> 02:11:37,676 THEY DIDN'T PUT IN HERE WHAT THE 2817 02:11:37,676 --> 02:11:38,944 OUTCOME WAS. 2818 02:11:38,944 --> 02:11:40,445 WAS THERE IMPROVEMENT. 2819 02:11:40,445 --> 02:11:43,048 IT JUST SAID WE DID THIS. 2820 02:11:43,048 --> 02:11:44,549 >> YOUR CONCERN IS SPOT ON. 2821 02:11:44,549 --> 02:11:47,152 THE OUTCOME IS NOT IN THE PAPER. 2822 02:11:47,152 --> 02:11:48,687 THEY'RE MERELY SAYING THEY ED IT 2823 02:11:48,687 --> 02:11:49,855 TO AN AGE GROUP. 2824 02:11:49,855 --> 02:11:52,424 I AGREE WITH JULIE'S CONCERN. 2825 02:11:52,424 --> 02:11:53,892 >> I AGREE TO. 2826 02:11:53,892 --> 02:11:56,595 IT WAS A FEASIBILITY STUDY 2827 02:11:56,595 --> 02:11:57,095 ESSENTIALLY. 2828 02:11:57,095 --> 02:11:59,231 ECHOING DINA WE NEED TO BE 2829 02:11:59,231 --> 02:12:00,465 MINDFUL WHEN WE'RE NOMINATING 2830 02:12:00,465 --> 02:12:02,834 THESE ARTICLES AND A LIST OF 2831 02:12:02,834 --> 02:12:04,336 CRITERIA THAT WE ARE MADE TO 2832 02:12:04,336 --> 02:12:06,605 STICK TO WOULD BE HELPFUL TO ALL 2833 02:12:06,605 --> 02:12:08,006 OF US, I THINK. 2834 02:12:08,006 --> 02:12:10,575 >> Josh: ABSOLUTELY. 2835 02:12:10,575 --> 02:12:13,645 IN THE PAST WE HAD THE NEED TO 2836 02:12:13,645 --> 02:12:16,014 INCLUDE SAMPLE SIZE BUT PERHAPS 2837 02:12:16,014 --> 02:12:18,917 WE HAVEN'T DONE THAT ENOUGH. 2838 02:12:18,917 --> 02:12:29,361 WOULD HRSA LIKE TO MAKE A 2839 02:12:29,361 --> 02:12:30,061 STATEMENT. 2840 02:12:30,061 --> 02:12:36,201 IT'S A FEASIBILITY STUDY AND WE 2841 02:12:36,201 --> 02:12:38,603 DON'T HAVE A RULE BUT IT WILL BE 2842 02:12:38,603 --> 02:12:39,204 WITHDRAWN. 2843 02:12:39,204 --> 02:12:45,644 PAUL, IS IS IT ON THIS ONE? 2844 02:12:45,644 --> 02:12:48,046 DINA TO YOU AND THEN PAUL. 2845 02:12:48,046 --> 02:12:48,313 PAUL. 2846 02:12:48,313 --> 02:12:54,019 >> A COMMENT ON 35 AND QUESTION 2847 02:12:54,019 --> 02:12:59,558 ON 36. 2848 02:12:59,558 --> 02:13:05,830 35 HAS TWO APPROACHES AND IT'S 2849 02:13:05,830 --> 02:13:07,732 UNUSUAL BUT GOOD TO SEE DIRECT 2850 02:13:07,732 --> 02:13:09,234 COMPARISONS OF THERAPEUTIC 2851 02:13:09,234 --> 02:13:11,336 APPROACHES AND EXTREMELY RARE. 2852 02:13:11,336 --> 02:13:12,938 THESE STUDIES DON'T GET PROPOSED 2853 02:13:12,938 --> 02:13:16,074 OR DONE AND IT'S GREAT TO SEE 2854 02:13:16,074 --> 02:13:26,217 THIS PUBLISHED. 2855 02:13:26,217 --> 02:13:28,486 POTENTIALLY ONE OF THE THERAPIES 2856 02:13:28,486 --> 02:13:33,491 OR THE OTHER WAS BETTER FOR 2857 02:13:33,491 --> 02:13:34,426 CERTAIN SUB POPULATIONS IT'S 2858 02:13:34,426 --> 02:13:36,528 IMPORTANT FROM THE SOCIOLOGY OF 2859 02:13:36,528 --> 02:13:38,964 SCIENCE LET ALONE THE RESULTS. 2860 02:13:38,964 --> 02:13:40,098 >> Josh: BEFORE YOU MOVE ON TO 2861 02:13:40,098 --> 02:13:42,033 YOUR SECOND ONE, I WANT TO 2862 02:13:42,033 --> 02:13:43,602 EMPHASIZE THIS IS A TOPIC WHICH 2863 02:13:43,602 --> 02:13:46,504 HAS COME UP IN THE PAST. 2864 02:13:46,504 --> 02:13:49,341 I DON'T REMEMBER THIS IACC OR 2865 02:13:49,341 --> 02:13:51,710 THE PREVIOUS ONE BUT WE NEED TO 2866 02:13:51,710 --> 02:13:53,778 BE COMPARE ACROSS TREATMENTS TO 2867 02:13:53,778 --> 02:13:55,647 KNOW WHAT WORKS BETTER OR 2868 02:13:55,647 --> 02:13:56,448 EQUIVALENTLY OR BETTER SO 2869 02:13:56,448 --> 02:13:58,883 THANKS, PAUL, FOR BRINGING THAT 2870 02:13:58,883 --> 02:13:59,217 UP. 2871 02:13:59,217 --> 02:14:01,453 >> MY QUESTION ON 36 IS WHETHER 2872 02:14:01,453 --> 02:14:02,988 IT BELONGS IN THE NEXT CATEGORY 2873 02:14:02,988 --> 02:14:03,922 SERVICES AND SUPPORT. 2874 02:14:03,922 --> 02:14:07,025 IT DOES NOT REPORT ON THE 2875 02:14:07,025 --> 02:14:09,160 BENEFITS OR LACK OF BENEFIT OF 2876 02:14:09,160 --> 02:14:11,229 AN INTERVENTION BUT SEEMS TO 2877 02:14:11,229 --> 02:14:14,799 TALK ABOUT WHO GETS BEHAVIORAL 2878 02:14:14,799 --> 02:14:17,402 THERAPIES. 2879 02:14:17,402 --> 02:14:18,169 LIKE THE DELIVERY OF THAT 2880 02:14:18,169 --> 02:14:20,872 CONTRIBUTION. 2881 02:14:20,872 --> 02:14:23,108 >> Josh: I THINK THAT'S A GOOD 2882 02:14:23,108 --> 02:14:25,610 POINT AND CAN BE EASILY MOVED. 2883 02:14:25,610 --> 02:14:33,952 ANY COMMENTS FROM THIS SECTION? 2884 02:14:33,952 --> 02:14:34,786 OKAY, THANK YOU VERY MUCH. 2885 02:14:34,786 --> 02:14:37,122 >> THERE'S AN EXAMPLE IN MY 2886 02:14:37,122 --> 02:14:40,091 OPINION OF A STUDY WITH A MODEST 2887 02:14:40,091 --> 02:14:41,926 SAMPLE SIZE BUT NEED TO DIG IN 2888 02:14:41,926 --> 02:14:44,763 THE DETAILS AND REALIZE IT'S A 2889 02:14:44,763 --> 02:14:48,566 UNIQUE SUBGROUP WITH A 2890 02:14:48,566 --> 02:14:50,035 PARTICULAR CHALLENGE AND SO 2891 02:14:50,035 --> 02:14:54,039 HAVING 70 KIDS WITH 6,000 PLUS 2892 02:14:54,039 --> 02:14:55,140 AGGRESSIVE BEHAVIORS OBSERVED. 2893 02:14:55,140 --> 02:14:57,575 WHEN PEOPLE THINK ABOUT THESE 2894 02:14:57,575 --> 02:14:59,911 THINGS I DON'T WANT THEM TO JUST 2895 02:14:59,911 --> 02:15:01,212 THINK ABOUT THEM VERY 2896 02:15:01,212 --> 02:15:03,081 SIMPLISTICALLY WHAT THE NUMBER 2897 02:15:03,081 --> 02:15:04,049 OF PEOPLE ARE NECESSARILY 2898 02:15:04,049 --> 02:15:06,017 BECAUSE IT'S A REALLY IMPORTANT 2899 02:15:06,017 --> 02:15:06,818 STUDY THAT CAN'T BE DONE IN 2900 02:15:06,818 --> 02:15:09,554 THOUSANDS OF PEOPLE. 2901 02:15:09,554 --> 02:15:12,257 >> THIS IS A STUDY FOR THOSE 2902 02:15:12,257 --> 02:15:14,159 LOOKING AT THIS FOR NOW WHERE 2903 02:15:14,159 --> 02:15:22,033 THEY STUDIED INDIVIDUALS WITH 2904 02:15:22,033 --> 02:15:23,735 EXTREME AGGRESSIVE BEHAVIORS AND 2905 02:15:23,735 --> 02:15:26,037 WERE ABLE TO PREDICT THREE 2906 02:15:26,037 --> 02:15:27,839 MINUTES BEFORE THE AGGRESSIVE 2907 02:15:27,839 --> 02:15:31,076 BEHAVIOR BASED ON BIOMARKERS THE 2908 02:15:31,076 --> 02:15:33,878 INDIVIDUALS WEAR WHEN IT WOULD 2909 02:15:33,878 --> 02:15:36,314 OCCUR AND STUDYING INDIVIDUALS 2910 02:15:36,314 --> 02:15:39,851 WITH AGGRESSIVE BEHAVIORS IS 2911 02:15:39,851 --> 02:15:40,719 ANOTHER PRIORITY IDENTIFIED AND 2912 02:15:40,719 --> 02:15:48,259 WE HAD A PANEL ON IT AT THE 2913 02:15:48,259 --> 02:15:48,660 IACC. 2914 02:15:48,660 --> 02:15:55,834 VERY COMPELLING 2915 02:15:55,834 --> 02:16:06,344 >> THIS WAYS STUDY WHERE THEY 2916 02:16:08,680 --> 02:16:09,247 REALLY TRIED AND PEOPLE PEOPLE 2917 02:16:09,247 --> 02:16:12,650 WERE ABLE TO WEAR THE SENSOR. 2918 02:16:12,650 --> 02:16:16,421 IT DOESN'T MEAN IT'S NOT BAD AND 2919 02:16:16,421 --> 02:16:19,691 WAS EFFECTIVE RATHER THAN JUST 2920 02:16:19,691 --> 02:16:22,026 BEING A PRELIMINARY WHAT CAN 2921 02:16:22,026 --> 02:16:24,162 HAPPEN. 2922 02:16:24,162 --> 02:16:27,198 >> Josh: OKAY. 2923 02:16:27,198 --> 02:16:27,599 VERY MUCH. 2924 02:16:27,599 --> 02:16:29,901 WE'LL MOVE ON TO SERVICES AND 2925 02:16:29,901 --> 02:16:30,502 SUPPORT 17 TO 28. 2926 02:16:30,502 --> 02:16:33,605 A LOT OF NOMINATIONS HERE. 2927 02:16:33,605 --> 02:16:42,013 THE NOMINATION IS NUMBER 37 TO 2928 02:16:42,013 --> 02:16:51,723 23. 2929 02:16:51,723 --> 02:16:52,791 37 TO 47. 2930 02:16:52,791 --> 02:16:53,558 DINA GO AHEAD. 2931 02:16:53,558 --> 02:16:57,629 >> I APOLOGIZE IF I DIDN'T READ 2932 02:16:57,629 --> 02:16:58,863 IT THOROUGHLY ENOUGH BUT ITEM 38 2933 02:16:58,863 --> 02:17:01,432 IS LOOKING AT THE DISRUPTION, 2934 02:17:01,432 --> 02:17:03,268 THE PANDEMIC DISRUPTION PEOPLE 2935 02:17:03,268 --> 02:17:05,870 ARE EXPERIENCE IN GETTING 2936 02:17:05,870 --> 02:17:09,641 TREATMENT AND CARE AND MY 2937 02:17:09,641 --> 02:17:11,709 QUESTION IS THEY FOUND AUTISTIC 2938 02:17:11,709 --> 02:17:12,944 CHILDREN WERE MORE LIKELY TO 2939 02:17:12,944 --> 02:17:15,246 HAVE UNMET NEEDS. 2940 02:17:15,246 --> 02:17:18,616 MY QUESTION IS DID THEY COMPARE 2941 02:17:18,616 --> 02:17:20,952 THAT TO NON-DISABLED KIDS. 2942 02:17:20,952 --> 02:17:24,122 DIDN'T MOST OF US DEFER MENTAL 2943 02:17:24,122 --> 02:17:27,158 CARE OR DENTAL CARE BECAUSE OF 2944 02:17:27,158 --> 02:17:29,260 THE RISK FACTOR DURING THE 2945 02:17:29,260 --> 02:17:30,795 PANDEMIC AND I'M NOT SURE WHAT 2946 02:17:30,795 --> 02:17:33,364 WE'LL BE ABLE TO GET FROM IT. 2947 02:17:33,364 --> 02:17:35,967 >> Josh: WOULD ANYONE FROM NIH 2948 02:17:35,967 --> 02:17:41,072 OR SSA LIKE TO RESPOND? 2949 02:17:41,072 --> 02:17:42,841 >> ARTICLE 38. 2950 02:17:42,841 --> 02:17:45,710 >> Josh: MY READ OF IT IT IS 2951 02:17:45,710 --> 02:17:49,747 THEY COMPARED TWO NON-AUTISTIC 2952 02:17:49,747 --> 02:17:50,248 CHILDREN. 2953 02:17:50,248 --> 02:17:53,918 IT'S IN THE NIMH DESCRIPTION NOT 2954 02:17:53,918 --> 02:17:56,888 SURE IT'S IN THE SSA ONE. 2955 02:17:56,888 --> 02:17:59,023 >> THEY COMPARED NON-AUTISTIC 2956 02:17:59,023 --> 02:18:01,426 CHILDREN FROM THE ARTICLE? 2957 02:18:01,426 --> 02:18:10,368 >> Josh: THANK YOU, ALICE. 2958 02:18:10,368 --> 02:18:10,635 MORENIKE. 2959 02:18:10,635 --> 02:18:13,338 >> NO COMMENTS ON THIS SECTION 2960 02:18:13,338 --> 02:18:16,307 ON THE LAST SECTION, MORENIKE ON 2961 02:18:16,307 --> 02:18:16,774 DINA'S POINT. 2962 02:18:16,774 --> 02:18:17,909 THANK YOU FOR THAT POINT. 2963 02:18:17,909 --> 02:18:22,046 SOME OF US ARE LIMITED BY 2964 02:18:22,046 --> 02:18:23,448 PAYWALLS AT TIMES. 2965 02:18:23,448 --> 02:18:25,450 >> I'D LIKE TO POINT OUT THERE'S 2966 02:18:25,450 --> 02:18:27,518 A HYPERLINK THAT GOES TO THE 2967 02:18:27,518 --> 02:18:29,320 ABSTRACT ON PUB MED WHICH IS A 2968 02:18:29,320 --> 02:18:31,222 PUBLIC WEBSITE SO YOU CAN AT 2969 02:18:31,222 --> 02:18:32,490 LEAST GET THE ABSTRACT FROM 2970 02:18:32,490 --> 02:18:34,225 THERE BUT WHEN WE SEND IT OUT 2971 02:18:34,225 --> 02:18:37,161 FOR VOTING WE DO SEND THE PAPERS 2972 02:18:37,161 --> 02:18:40,231 THEMSELVES BUT WE CAN SEND IT TO 2973 02:18:40,231 --> 02:18:41,900 YOU ANYTIME YOU WANT IF YOU JUST 2974 02:18:41,900 --> 02:18:43,668 WRITE TO THE OFFICE WE HAVE ALL 2975 02:18:43,668 --> 02:18:45,503 OF THOSE BUT DON'T WANT TO FLOOD 2976 02:18:45,503 --> 02:18:49,607 YOUR INBOX WITH LOTS OF STUFF 2977 02:18:49,607 --> 02:18:52,410 BUT NEXT TIME WE'LL RIGHT STRACT 2978 02:18:52,410 --> 02:18:54,746 AND MAKE THAT THE HYPERLINK TO 2979 02:18:54,746 --> 02:18:55,980 MAKE IT MORE OBVIOUS. 2980 02:18:55,980 --> 02:18:59,250 >> ALSO A LOT OF THE PAPERS 2981 02:18:59,250 --> 02:19:02,820 FUNDED BY NIH HAVE A PMC I.D. 2982 02:19:02,820 --> 02:19:04,355 WHERE YOU CAN GET ACCESS TO THE 2983 02:19:04,355 --> 02:19:08,293 PAPER FOR FREE. 2984 02:19:08,293 --> 02:19:09,527 >> Josh: IF THERE'S NO OTHER 2985 02:19:09,527 --> 02:19:11,296 COMMENTS I WANT TO HIGHLIGHT ONE 2986 02:19:11,296 --> 02:19:13,798 THAT IS IN MY MIND RESPONSIVE TO 2987 02:19:13,798 --> 02:19:18,436 THE IACC INPUT AND THAT'S NUMBER 2988 02:19:18,436 --> 02:19:21,139 40, THE FINEBERG ET AL. PAPER. 2989 02:19:21,139 --> 02:19:23,308 IN FACT IT CAME UP TODAY. 2990 02:19:23,308 --> 02:19:29,180 THE IMPORTANCE OF FAMILY 2991 02:19:29,180 --> 02:19:29,480 NAVIGATORS. 2992 02:19:29,480 --> 02:19:32,850 THEY'RE OFTEN DESIRED AND OFTEN 2993 02:19:32,850 --> 02:19:36,554 ADVOCATED FOR AND NIMH ARE 2994 02:19:36,554 --> 02:19:37,555 TRYING TO DO THE EVIDENCE BASE 2995 02:19:37,555 --> 02:19:39,223 TO SUPPORT THAT AND THIS IS ONE 2996 02:19:39,223 --> 02:19:41,459 PAPER THAT ATTEMPTS TO DO THAT 2997 02:19:41,459 --> 02:19:44,362 WITH A DECENT SAMPLE SIZE OF 339 2998 02:19:44,362 --> 02:19:44,729 FAMILIES. 2999 02:19:44,729 --> 02:19:47,432 PAUL, DID YOU WANT TO COMMENT? 3000 02:19:47,432 --> 02:19:48,933 >> I HAVE TO EDUCATE MYSELF ON 3001 02:19:48,933 --> 02:19:51,002 THIS PAPER BECAUSE I LIKED VERY 3002 02:19:51,002 --> 02:19:54,038 MUCH THE 2021 SUMMARY ADVANCES 3003 02:19:54,038 --> 02:19:56,641 WINTER FROM THE SAME AUTHORS AND 3004 02:19:56,641 --> 02:19:57,742 SEEMS LIKE THE SAME PROJECT. 3005 02:19:57,742 --> 02:19:59,911 I WANT TO READ CAREFULLY WHAT'S 3006 02:19:59,911 --> 02:20:00,845 NEW IN THIS ONE. 3007 02:20:00,845 --> 02:20:02,880 >> Josh: THANKS, IF YOU COULD 3008 02:20:02,880 --> 02:20:03,548 LET US KNOW WE CAN PROMULGATE 3009 02:20:03,548 --> 02:20:11,222 THAT. 3010 02:20:11,222 --> 02:20:11,489 OKAY. 3011 02:20:11,489 --> 02:20:12,590 WE'LL MOVE IT ON THE NEXT 3012 02:20:12,590 --> 02:20:16,294 SECTION ON LIFE SPAN FROM PAGE 3013 02:20:16,294 --> 02:20:22,333 23 TO 32. 3014 02:20:22,333 --> 02:20:32,276 ARTICLES 48 TO 69. 3015 02:20:32,276 --> 02:20:34,045 ENE COMMENTS, QUESTIONS OR 3016 02:20:34,045 --> 02:20:35,813 POINTS ON THOSE ARTICLES ON LIFE 3017 02:20:35,813 --> 02:20:36,080 SPAN. 3018 02:20:36,080 --> 02:20:38,016 IT'S WONDERFUL TO SEE SO MANY OF 3019 02:20:38,016 --> 02:20:47,492 THAT. 3020 02:20:47,492 --> 02:20:49,293 GO AHEAD. 3021 02:20:49,293 --> 02:20:52,296 >> IT MAY SEEM SELF-SERVING TO 3022 02:20:52,296 --> 02:20:57,468 GIVE A SHUT OUT TO OUR 3023 02:20:57,468 --> 02:21:00,838 COLLEAGUES AT CDC AS MATT 3024 02:21:00,838 --> 02:21:02,640 MAENNER SAID TODAY. 3025 02:21:02,640 --> 02:21:05,410 NUMBER 53 WHICH THIS YEAR HAS 3026 02:21:05,410 --> 02:21:10,548 BEEN OUR FIRST TIME WE'VE BEEN 3027 02:21:10,548 --> 02:21:12,917 ABLE TO LOOK FORWARD IN THE 3028 02:21:12,917 --> 02:21:14,886 YOUTH AND YOUNG ADULTS NETWORK 3029 02:21:14,886 --> 02:21:17,755 AND THIS SPECIFICALLY LOOKS AT 3030 02:21:17,755 --> 02:21:18,389 EDUCATION AND TRANSITION 3031 02:21:18,389 --> 02:21:19,957 PLANNING FOR YOUTH AND YOUNG 3032 02:21:19,957 --> 02:21:22,360 ADULTS USING THE ADDM NETWORK 3033 02:21:22,360 --> 02:21:23,528 AND THINK IT'S A REALLY HELPFUL 3034 02:21:23,528 --> 02:21:24,195 CONTRIBUTION. 3035 02:21:24,195 --> 02:21:34,539 >> Josh: THANK YOU. 3036 02:21:44,348 --> 02:21:44,782 >> Josh: SCOTT. 3037 02:21:44,782 --> 02:21:45,983 >> COMMENTS AND QUESTIONS ABOUT 3038 02:21:45,983 --> 02:21:49,153 THE ONES I NOMINATED. 3039 02:21:49,153 --> 02:21:50,088 WHERE'S THE BOUNDARY BETWEEN 3040 02:21:50,088 --> 02:21:51,756 SUPPORT AND SERVICES AND LIFE 3041 02:21:51,756 --> 02:21:56,094 SPAN AND FOR EMPLOYMENT I WASN'T 3042 02:21:56,094 --> 02:21:59,730 SURE WHERE THE DIVIDING LINES 3043 02:21:59,730 --> 02:22:02,700 ARE ON THAT AND A WANTED TO 3044 02:22:02,700 --> 02:22:05,169 HIGHLIGHT A COUPLE OF THE ONES I 3045 02:22:05,169 --> 02:22:05,436 NOMINATED. 3046 02:22:05,436 --> 02:22:11,542 ONE WAS ON ONE OF MY MASKING 3047 02:22:11,542 --> 02:22:13,678 WHICH HAS COME UP A LOT RECENTLY 3048 02:22:13,678 --> 02:22:17,448 IN TERMS OF COMMITTEE'S FOCUSES 3049 02:22:17,448 --> 02:22:17,982 ON DISCUSSIONS RELATED TO 3050 02:22:17,982 --> 02:22:18,783 SOCIALIZATION AND COMMUNICATION 3051 02:22:18,783 --> 02:22:22,019 AND OTHER ASPECTS OF LIFE 3052 02:22:22,019 --> 02:22:24,889 EXPERIENCES AND THIS WAS QUITE 3053 02:22:24,889 --> 02:22:25,456 GROUNDBREAKING IN TERMS OF 3054 02:22:25,456 --> 02:22:26,724 LOOKING AT THE EMPLOYMENT 3055 02:22:26,724 --> 02:22:28,292 CONTEXT AS THE ONLY STUDY THAT'S 3056 02:22:28,292 --> 02:22:30,928 EVER DONE THAT AND HAS A PRETTY 3057 02:22:30,928 --> 02:22:32,230 SIGNIFICANT SAMPLE SIZE AND 3058 02:22:32,230 --> 02:22:33,364 LOOKED AT MASKING -- 3059 02:22:33,364 --> 02:22:34,899 >> Josh: TELL US WHAT NUMBER 3060 02:22:34,899 --> 02:22:37,568 YOU'RE TALKING ABOUT. 3061 02:22:37,568 --> 02:22:40,972 >> THAT'S NUMBER 61, I BELIEVE. 3062 02:22:40,972 --> 02:22:46,777 IT'S THE ARTICLE BY I'M BAD WITH 3063 02:22:46,777 --> 02:22:56,287 NAMES BUT PRIQUE-HOBBS WORKPLACE 3064 02:22:56,287 --> 02:22:58,623 MASKING OF NEURO TYPICAL ADULTS 3065 02:22:58,623 --> 02:22:58,923 IN THE U.K. 3066 02:22:58,923 --> 02:23:04,629 THE SAMPLE SIZE WAS 472 FOLKS 3067 02:23:04,629 --> 02:23:06,264 THAT'S PRETTY SIGNIFICANT AND 3068 02:23:06,264 --> 02:23:10,368 285 AUTISTIC PEOPLE AND THE REST 3069 02:23:10,368 --> 02:23:12,403 WERE OTHER NEURODIVERGENT FOLKS 3070 02:23:12,403 --> 02:23:15,506 AND IT WAS VERY EYE OPENING FROM 3071 02:23:15,506 --> 02:23:17,475 THE QUALITATIVE RESEARCH AND THE 3072 02:23:17,475 --> 02:23:19,410 FINDINGS WERE HELPFUL IN 3073 02:23:19,410 --> 02:23:20,912 LEARNING ABOUT BARRIERS THAT 3074 02:23:20,912 --> 02:23:24,682 STEM FROM MASKING AND HOW IT 3075 02:23:24,682 --> 02:23:26,617 IMPACTS FOLKS' PHYSICAL AND 3076 02:23:26,617 --> 02:23:28,286 MENTAL HEALTH AND WELL BEING. 3077 02:23:28,286 --> 02:23:33,124 THE OTHER ARTICLE I WANTED TO 3078 02:23:33,124 --> 02:23:35,293 HIGHLIGHT TO WAS THE SOCIAL 3079 02:23:35,293 --> 02:23:42,033 ASPECT OF THINGS THE NUMBER 66 3080 02:23:42,033 --> 02:23:52,410 ON SCECHY, IT TALKS ABOUT THE 3081 02:23:52,410 --> 02:23:53,844 PERCEPTIONS IN THE WORKPLACE AND 3082 02:23:53,844 --> 02:23:55,713 THIS WAS ESPECIALLY MEANINGFUL 3083 02:23:55,713 --> 02:23:57,381 BECAUSE THERE'S A GROWING 3084 02:23:57,381 --> 02:23:59,784 LITERATURE ON THE DOUBLE EMPATHY 3085 02:23:59,784 --> 02:24:01,552 PROBLEM IN TERMS OF THE SOCIAL 3086 02:24:01,552 --> 02:24:04,622 ISSUES THAT STEM NOT JUST FROM 3087 02:24:04,622 --> 02:24:08,226 AUTISTIC PEOPLE'S DIFFICULTIES 3088 02:24:08,226 --> 02:24:09,427 BUT DIFFERENCES IN PROCESSING IN 3089 02:24:09,427 --> 02:24:11,395 AUTISTIC AND NON-AUTISTIC PEOPLE 3090 02:24:11,395 --> 02:24:13,864 AND THAT CREATES BARRIERS 3091 02:24:13,864 --> 02:24:17,001 EXPERIENCED BUT THE FACT ALSO 3092 02:24:17,001 --> 02:24:18,936 THAT IT HIGHLIGHTED HOW AUTISTIC 3093 02:24:18,936 --> 02:24:21,539 PEOPLE WERE OFTEN BETTER 3094 02:24:21,539 --> 02:24:22,640 SOMETIMES READING INTO CERTAIN 3095 02:24:22,640 --> 02:24:25,176 SITUATIONS AND THE STORY LINE 3096 02:24:25,176 --> 02:24:27,411 THEY HAD IS THE RESULT THAT WAS 3097 02:24:27,411 --> 02:24:30,581 FOUND IN THE STUDY THAT AUTISTIC 3098 02:24:30,581 --> 02:24:34,018 PEOPLE UNDERSTOOD THE 3099 02:24:34,018 --> 02:24:37,321 PERSPECTIVE BETTER OF THE 3100 02:24:37,321 --> 02:24:38,489 AUTISTIC PERSON IN THE WORKPLACE 3101 02:24:38,489 --> 02:24:40,925 THAN NON-AUTISTIC PEOPLE IN TERM 3102 02:24:40,925 --> 02:24:44,462 OF DIFFERENCES IN PERCEPTION AND 3103 02:24:44,462 --> 02:24:49,033 PROCESSING THAT SITUATION. 3104 02:24:49,033 --> 02:24:50,968 COMPARATIVELY AND GOOD EVIDENCE 3105 02:24:50,968 --> 02:24:53,804 BASE FOR ADVANCING THAT DOUBLE 3106 02:24:53,804 --> 02:24:54,505 EMPATHY PROBLEM IN REGARD TO THE 3107 02:24:54,505 --> 02:24:58,109 WORKPLACE AND OVER ALL. 3108 02:24:58,109 --> 02:24:59,443 >> Josh: THANKS, SCOTT. 3109 02:24:59,443 --> 02:25:00,978 IN ANSWER TO YOUR FIRST 3110 02:25:00,978 --> 02:25:02,213 QUESTION, THESE CATEGORIES ARE 3111 02:25:02,213 --> 02:25:06,784 MEANT TO BE APPLIED TO 3112 02:25:06,784 --> 02:25:10,755 CATEGORIES IN OUR STRATEGIC 3113 02:25:10,755 --> 02:25:11,289 PLAN. 3114 02:25:11,289 --> 02:25:13,891 SO I THINK THIS ONE FOR EXAMPLE 3115 02:25:13,891 --> 02:25:21,432 THE EMPATHY IS IN PARTICULAR TO 3116 02:25:21,432 --> 02:25:23,768 ADULTS WITH AUTISM AND COULD BE 3117 02:25:23,768 --> 02:25:25,069 AFFECTS IN CHILDREN BUT THAT'S 3118 02:25:25,069 --> 02:25:27,538 WHAT I'D LOOK AT IN LOOKING AT 3119 02:25:27,538 --> 02:25:31,242 WHAT AREA TO NOMINATE IT AND 3120 02:25:31,242 --> 02:25:34,045 WHICH CHAPTER OF OUR STRATEGIC 3121 02:25:34,045 --> 02:25:34,245 PLAN. 3122 02:25:34,245 --> 02:25:38,182 JULIE. 3123 02:25:38,182 --> 02:25:40,618 >> I HAVE TWO PAPERS I WANTED TO 3124 02:25:40,618 --> 02:25:43,521 SAY REALLY QUICK WORD ABOUT. 3125 02:25:43,521 --> 02:25:48,893 THE FIRST IS NUMBER 52 THE HAHN 3126 02:25:48,893 --> 02:25:51,529 PAPER AND I WAS INVOLVED IN THE 3127 02:25:51,529 --> 02:25:56,233 PAPER THOUGH AS A MINOR ROLE AND 3128 02:25:56,233 --> 02:25:58,035 THIS IS LOOKING AT DEVELOPMENT 3129 02:25:58,035 --> 02:26:00,571 AND CHANGE OVER TIME AMONG 3130 02:26:00,571 --> 02:26:01,872 ADOLESCENTS AND ADULTS USING 3131 02:26:01,872 --> 02:26:03,808 DATA COLLECTED OVER 22 YEARS. 3132 02:26:03,808 --> 02:26:06,010 A LONGITUDINAL STUDY OF 22 3133 02:26:06,010 --> 02:26:06,644 YEARS. 3134 02:26:06,644 --> 02:26:08,913 THE YOUNGEST PEOPLE WERE 10 AT 3135 02:26:08,913 --> 02:26:11,282 THE START OF THE STUDY AND THE 3136 02:26:11,282 --> 02:26:13,651 OLDEST WERE 69 AT THE END. 3137 02:26:13,651 --> 02:26:17,555 WE USED THE LONGITUDINAL DESIGN 3138 02:26:17,555 --> 02:26:19,323 TO CHARACTERIZE TRAJECTORIES 3139 02:26:19,323 --> 02:26:22,326 OVER 40, 50 YEARS OF THE LIVES 3140 02:26:22,326 --> 02:26:25,262 OF AUTISTIC ADULTS IN THE 3141 02:26:25,262 --> 02:26:25,496 SAMPLE. 3142 02:26:25,496 --> 02:26:27,331 WE FOUND THERE ARE WORSENING OF 3143 02:26:27,331 --> 02:26:30,835 DEVELOPMENT TRAJECTORIES ACROSS 3144 02:26:30,835 --> 02:26:33,337 AREAS WHEN WE GET TO MID LIFE 3145 02:26:33,337 --> 02:26:34,071 AND EARLY OLD AGE. 3146 02:26:34,071 --> 02:26:35,840 MOST OF WHAT WE KNOW ABOUT 3147 02:26:35,840 --> 02:26:37,508 DEVELOPMENT IN AUTISTIC ADULTS 3148 02:26:37,508 --> 02:26:40,544 IS FROM EARLY ADULTS AND EARLY 3149 02:26:40,544 --> 02:26:41,879 ADULTHOOD AND STARTING TO 3150 02:26:41,879 --> 02:26:43,047 UNDERSTAND HOW THINGS MAY CHANGE 3151 02:26:43,047 --> 02:26:46,016 WHEN PEOPLE MOVE INTO OLDER 3152 02:26:46,016 --> 02:26:49,053 ADULTHOOD AND WHAT THE NEEDS 3153 02:26:49,053 --> 02:26:51,055 THEY MAY HAVE FOR OLDER ADULTS 3154 02:26:51,055 --> 02:26:52,857 IS SOMETHING THEY DON'T KNOW 3155 02:26:52,857 --> 02:26:54,658 MUCH ABOUT AND START TO TELL US 3156 02:26:54,658 --> 02:26:54,992 A LITTLE BIT. 3157 02:26:54,992 --> 02:26:57,061 I WANTED TO MENTION THAT AND 68 3158 02:26:57,061 --> 02:26:59,663 IS A STUDY I NOMINATED BUT WAS 3159 02:26:59,663 --> 02:27:00,297 NOT INVOLVED IN. 3160 02:27:00,297 --> 02:27:03,267 THIS IS LOOKING AT EMPLOYMENT 3161 02:27:03,267 --> 02:27:04,735 OUTCOMES FOR AUTISTIC COLLEGE 3162 02:27:04,735 --> 02:27:06,003 GRADUATES AND THE REASON WHY I 3163 02:27:06,003 --> 02:27:08,205 THOUGHT THIS WAS IMPORTANT IS 3164 02:27:08,205 --> 02:27:09,640 BECAUSE I HEAR PEOPLE THROWING 3165 02:27:09,640 --> 02:27:10,941 AROUND STATISTICS ALL THE TIME 3166 02:27:10,941 --> 02:27:14,612 ABOUT THE RATES OF EMPLOYMENT 3167 02:27:14,612 --> 02:27:16,313 FOR COLLEGE GRADUATES AND I 3168 02:27:16,313 --> 02:27:18,416 DON'T KNOW OF A SINGLE STUDY 3169 02:27:18,416 --> 02:27:22,019 BEFORE THIS THAT HAS LOOKED AT 3170 02:27:22,019 --> 02:27:25,055 THAT IN A RIGOROUS BACK AND A 3171 02:27:25,055 --> 02:27:27,491 TRACED IT BACK TO A BLOG POST 3172 02:27:27,491 --> 02:27:30,027 PEOPLE ARE CITING SAYING 80% OF 3173 02:27:30,027 --> 02:27:32,129 AUTISTIC COLLEGE WATS ARE 3174 02:27:32,129 --> 02:27:32,430 UNEMPLOYED. 3175 02:27:32,430 --> 02:27:36,801 THIS STUDY HAS RIGOROUS 3176 02:27:36,801 --> 02:27:38,836 POPULATION-BASED DATA ON THE 3177 02:27:38,836 --> 02:27:40,504 RATE OF COLLEGE GRADUATES AND 3178 02:27:40,504 --> 02:27:42,373 UNEMPLOYMENT IS HIGH NOT 80% BUT 3179 02:27:42,373 --> 02:27:44,508 I THINK IT STARTS TO GIVE A FEEL 3180 02:27:44,508 --> 02:27:46,343 FOR WHAT THIS TRANSITION FROM 3181 02:27:46,343 --> 02:27:47,278 COLLEGE INTO EMPLOYMENT LOOKS 3182 02:27:47,278 --> 02:27:49,380 LIKE FOR THIS GROUP AND WHERE 3183 02:27:49,380 --> 02:27:50,448 THE NEEDS MIGHT BE. 3184 02:27:50,448 --> 02:27:52,683 AND MAYBE THERE'S ANOTHER STUDY 3185 02:27:52,683 --> 02:27:54,018 THAT'S LOOKED AT THIS BUT I 3186 02:27:54,018 --> 02:27:56,520 HAVEN'T COME ACROSS THIS SO I 3187 02:27:56,520 --> 02:27:57,521 THOUGHT IT WAS IMPORTANT. 3188 02:27:57,521 --> 02:28:00,090 >> Josh: THANK YOU, JULIE. 3189 02:28:00,090 --> 02:28:00,691 JEN. 3190 02:28:00,691 --> 02:28:02,660 >> MAY I MAKE A SUGGESTION WHEN 3191 02:28:02,660 --> 02:28:05,930 ORGANIZING THE PAPERS FOR US TO 3192 02:28:05,930 --> 02:28:09,700 DECIDE ON, CAN WE ORGANIZE IT BY 3193 02:28:09,700 --> 02:28:12,736 MAYBE AGE GROUP STARTING WITH 3194 02:28:12,736 --> 02:28:14,038 ADOLESCENTS AND TRANSITIONS AND 3195 02:28:14,038 --> 02:28:16,941 THEN ADULTS AND THEN MAYBE LIKE 3196 02:28:16,941 --> 02:28:18,476 THE STUDY JULIE MENTIONED WHERE 3197 02:28:18,476 --> 02:28:22,079 IT INCLUDES THE ENTIRE LIFE SPAN 3198 02:28:22,079 --> 02:28:24,315 ALMOST BECAUSE THAT WILL REALLY 3199 02:28:24,315 --> 02:28:26,383 HELP WITH DECIDING SELECTING THE 3200 02:28:26,383 --> 02:28:28,652 20 ARTICLES TO BE INCLUDED. 3201 02:28:28,652 --> 02:28:29,019 THANK YOU. 3202 02:28:29,019 --> 02:28:29,954 >> Josh: THANKS. 3203 02:28:29,954 --> 02:28:33,357 THAT'S A HELPFUL SUGGESTION. 3204 02:28:33,357 --> 02:28:33,757 DINA. 3205 02:28:33,757 --> 02:28:38,028 >> I WANT TO GO BACK TO JULIE 3206 02:28:38,028 --> 02:28:40,731 STUDY, 52 ABOUT THE CHANGES OVER 3207 02:28:40,731 --> 02:28:46,103 THE LIFE SPAN AND I JUST WANT TO 3208 02:28:46,103 --> 02:28:48,305 SAY FROM A POLICY STANDPOINT WE 3209 02:28:48,305 --> 02:28:49,974 NEED TO HOLD ON TO THIS KIND OF 3210 02:28:49,974 --> 02:28:53,978 AN ARTICLE BECAUSE IT REFLECTS 3211 02:28:53,978 --> 02:28:58,015 WHILE A PERSON IN EARLY 3212 02:28:58,015 --> 02:29:00,384 ADULTHOOD MAY HAVE HAD COGNITIVE 3213 02:29:00,384 --> 02:29:02,019 CAPACITY LEANING TOWARDS MORE 3214 02:29:02,019 --> 02:29:03,120 SELF SUFFICIENCY THAT CAN BE 3215 02:29:03,120 --> 02:29:04,989 HELD AGAINST THEM IN SEEKING 3216 02:29:04,989 --> 02:29:06,023 COMMUNITY-BASED INTERVENTIONS 3217 02:29:06,023 --> 02:29:09,226 LATER ON WHEN WE HIT THE DEEP 3218 02:29:09,226 --> 02:29:10,060 WELL IN THE BOTTOM. 3219 02:29:10,060 --> 02:29:12,863 I'M NOT ONE OF THOSE PEOPLE 3220 02:29:12,863 --> 02:29:14,265 HITTING THE DEEP WELL. 3221 02:29:14,265 --> 02:29:16,667 I'M 65 AND JUST FINISHED MY 3222 02:29:16,667 --> 02:29:18,469 Ph.D. BUT I'VE HAD REPORTING 3223 02:29:18,469 --> 02:29:20,037 FROM A LOT OF AUTISTIC ADULTS 3224 02:29:20,037 --> 02:29:22,907 THAT FIND BETWEEN BURNOUT AND 3225 02:29:22,907 --> 02:29:25,709 THEN CONSTANT ONSLAUGHT OF 3226 02:29:25,709 --> 02:29:27,478 DEMAND FOR SELF-SUFFICIENCY AND 3227 02:29:27,478 --> 02:29:29,013 INDEPENDENT LIVING SKILLS THEY 3228 02:29:29,013 --> 02:29:30,648 STRUGGLE TO SUSTAIN THAT. 3229 02:29:30,648 --> 02:29:31,815 I THINK FROM A POLICY STANDPOINT 3230 02:29:31,815 --> 02:29:35,019 WE NEED TO FIGURE OUT HOW TO 3231 02:29:35,019 --> 02:29:36,820 INCREASE SERVICES OR PROVIDER 3232 02:29:36,820 --> 02:29:37,788 SERVICE TO PEOPLE WHO MAY NOT 3233 02:29:37,788 --> 02:29:39,356 PREVIOUSLY HAVE NEEDED THEM. 3234 02:29:39,356 --> 02:29:42,860 I THINK THIS RESEARCH ARTICLE 3235 02:29:42,860 --> 02:29:43,661 SUPPORTS US ASKING FOR BETTER 3236 02:29:43,661 --> 02:29:47,164 AND ENHANCED OUTCOMES THERE. 3237 02:29:47,164 --> 02:29:47,598 >> Josh: THANK YOU. 3238 02:29:47,598 --> 02:29:52,169 MORENIKE. 3239 02:29:52,169 --> 02:29:55,072 >> SHE SAYS THEY WHOLEHEARTEDLY 3240 02:29:55,072 --> 02:29:57,908 AGREE WITH JENNY'S REMARK AND 3241 02:29:57,908 --> 02:30:00,277 WHAT DINA SAID IS TRUE OF MANY 3242 02:30:00,277 --> 02:30:00,878 INDIVIDUALS IN THE COMMUNITY. 3243 02:30:00,878 --> 02:30:02,379 >> Josh: THANK YOU. 3244 02:30:02,379 --> 02:30:06,684 >> ONE MORE QUICKIE, ON 56, THE 3245 02:30:06,684 --> 02:30:07,751 ARTICLE ABOUT SELF-HARM. 3246 02:30:07,751 --> 02:30:11,221 I WANT TO POINT OUT THE 3247 02:30:11,221 --> 02:30:14,491 INORDINATE RATE OF SELF-HARM 3248 02:30:14,491 --> 02:30:15,559 AROUND AUTISTIC FEMALES IN 3249 02:30:15,559 --> 02:30:15,759 STUDY. 3250 02:30:15,759 --> 02:30:18,996 I THINK IT'S THE RULE RATHER 3251 02:30:18,996 --> 02:30:19,897 THEN THE EXCEPTION. 3252 02:30:19,897 --> 02:30:24,501 AND DELINEATING THIS SELF-HARM 3253 02:30:24,501 --> 02:30:26,904 FROM SELF-INJURIOUS BEHAVIOR IS 3254 02:30:26,904 --> 02:30:27,204 NOT HELPFUL. 3255 02:30:27,204 --> 02:30:29,006 IF YOU'RE HURTING YOURSELF, 3256 02:30:29,006 --> 02:30:31,675 YOU'RE HURTING YOURSELF AND 3257 02:30:31,675 --> 02:30:32,977 DELINEATING IT OUT DON'T SEEM TO 3258 02:30:32,977 --> 02:30:38,315 BE PARTICULARLY HELPFUL OUT BUT 3259 02:30:38,315 --> 02:30:41,352 I APPRECIATE THAT AND 86% IS 3260 02:30:41,352 --> 02:30:41,752 INORDINATE. 3261 02:30:41,752 --> 02:30:45,856 >> Josh: SO YOU KNOW IT'S 83% 3262 02:30:45,856 --> 02:30:53,030 INCREASE LIKELIHOOD NOT 83 3263 02:30:53,030 --> 02:30:55,532 PARTLY OVER ALL LIKELIHOOD 3264 02:30:55,532 --> 02:30:57,267 THOUGH THEY'RE BIG NUMBERS. 3265 02:30:57,267 --> 02:30:57,968 PAUL. 3266 02:30:57,968 --> 02:31:04,675 >> LOOKING FOR GUIDANCE, DR. 3267 02:31:04,675 --> 02:31:06,777 DR. IOR -- DR. GORDON AND 3268 02:31:06,777 --> 02:31:08,812 DANIELS A LOT OF THESE ARE FROM 3269 02:31:08,812 --> 02:31:09,513 OUTSIDE THE UNITED STATES. 3270 02:31:09,513 --> 02:31:11,682 DO WE NEED TO TAKE THAT INTO 3271 02:31:11,682 --> 02:31:13,550 ACCOUNT AS WE THINK ABOUT THIS 3272 02:31:13,550 --> 02:31:16,687 OR NO, SIMPLY IGNORE THAT FACT? 3273 02:31:16,687 --> 02:31:18,589 >> Susan: IN TERMS OF OUR CHARGE 3274 02:31:18,589 --> 02:31:21,425 FROM CONGRESS IS TO IDENTIFY 3275 02:31:21,425 --> 02:31:22,026 SCIENTIFIC ADVANCES SO IT 3276 02:31:22,026 --> 02:31:24,695 DOESN'T SAY ONLY FROM THE UNITED 3277 02:31:24,695 --> 02:31:26,697 STATES OR FUNDED BY 3278 02:31:26,697 --> 02:31:27,031 U.S. FUNDERS. 3279 02:31:27,031 --> 02:31:29,033 I BELIEVE YOU CAN NOMINATE 3280 02:31:29,033 --> 02:31:30,267 ANYTHING YOU THINK IS AN 3281 02:31:30,267 --> 02:31:31,635 IMPORTANT ADVANCE YOU THINK 3282 02:31:31,635 --> 02:31:32,269 CONGRESS AND THE PUBLIC NEED TO 3283 02:31:32,269 --> 02:31:34,338 KNOW ABOUT. 3284 02:31:34,338 --> 02:31:36,707 >> IN ADDITION WE HAVE TO 3285 02:31:36,707 --> 02:31:39,677 RECOGNIZE THE DIFFERENCE IN THE 3286 02:31:39,677 --> 02:31:42,046 EDUCATIONAL SYSTEMS 3287 02:31:42,046 --> 02:31:43,013 INTERNATIONALLY AND REHAB 3288 02:31:43,013 --> 02:31:44,548 DOESN'T EXIST IN MANY OF THESE 3289 02:31:44,548 --> 02:31:46,116 COUNTRIES. 3290 02:31:46,116 --> 02:31:47,117 NOT GOING TO COLLEGE IS COMMON 3291 02:31:47,117 --> 02:31:49,687 IN THE U.K. AMONG THE REGULAR 3292 02:31:49,687 --> 02:31:51,722 POPULATION AS COMPARED TO THE 3293 02:31:51,722 --> 02:31:53,590 U.S. WHERE IT'S ALMOST EXPECTED. 3294 02:31:53,590 --> 02:31:54,725 AS WE WEIGH INTERNATIONAL 3295 02:31:54,725 --> 02:31:56,226 STUDIES TO INCLUDE I THINK WE 3296 02:31:56,226 --> 02:32:00,497 NEED TO WEIGH ALL THE EXTRA 3297 02:32:00,497 --> 02:32:00,731 FACTORS. 3298 02:32:00,731 --> 02:32:04,768 >> Josh: IF I CAN GENERALIZE 3299 02:32:04,768 --> 02:32:07,104 WHAT WE WOULD NOT WANT TO DO IS 3300 02:32:07,104 --> 02:32:08,872 VOTE FOR OR PUT FORTH 3301 02:32:08,872 --> 02:32:10,841 APPLICATIONS WE DONT THINK ARE 3302 02:32:10,841 --> 02:32:13,477 GENERALLY APPLICABLE WHETHER WE 3303 02:32:13,477 --> 02:32:17,014 TALK ABOUT THE GENERALITY ON THE 3304 02:32:17,014 --> 02:32:27,524 GLOBAL SCALE OR UNITED STATES. 3305 02:32:34,565 --> 02:32:39,870 AND THIS IS LONGITUDINAL STUDIES 3306 02:32:39,870 --> 02:32:41,872 AND TRACKING INDIVIDUALS OVER 3307 02:32:41,872 --> 02:32:43,507 TIME FOR AN EXTENDED PERIOD OF 3308 02:32:43,507 --> 02:32:46,009 TIME AND IT'S HARD TO DO AND 3309 02:32:46,009 --> 02:32:47,211 EXPENSIVE AND VALUABLE. 3310 02:32:47,211 --> 02:32:49,146 IT'S NOT THAT OTHER STUDIES 3311 02:32:49,146 --> 02:32:50,781 SHOULDN'T BE DONE IT'S THAT THIS 3312 02:32:50,781 --> 02:32:54,718 IS THE SORT OF STUDY WE NEED TO 3313 02:32:54,718 --> 02:32:57,087 CONTINUE TO INVEST IN THE 3314 02:32:57,087 --> 02:33:01,992 LONGITUDINAL DESIGN SO FOR THAT 3315 02:33:01,992 --> 02:33:02,626 REASON -- 3316 02:33:02,626 --> 02:33:03,727 >> Josh: THANK YOU, WE'RE GOING 3317 02:33:03,727 --> 02:33:04,428 TO MOVE ON. 3318 02:33:04,428 --> 02:33:05,763 SCOTT, WE'RE WORRIED ABOUT TIME 3319 02:33:05,763 --> 02:33:07,731 SO PLEASE KEEP YOUR REMARKS 3320 02:33:07,731 --> 02:33:09,399 BRIEF BUT PLEASE GO AHEAD, 3321 02:33:09,399 --> 02:33:09,666 SCOTT. 3322 02:33:09,666 --> 02:33:17,941 >> BRIEFLY I WANTED TO NOTE I 3323 02:33:17,941 --> 02:33:20,010 SUGGEST WE KEEP THE FOCUS 3324 02:33:20,010 --> 02:33:20,577 ALLOWING FOR INTERNATIONAL 3325 02:33:20,577 --> 02:33:24,381 RESEARCH BECAUSE IF WE HAD TO 3326 02:33:24,381 --> 02:33:26,617 RESTRICT THE U.S.-FUNDED 3327 02:33:26,617 --> 02:33:28,218 RESEARCH IT WOULD HINDERED ON 3328 02:33:28,218 --> 02:33:31,255 THE LIFE SPAN AREA AND THE 3329 02:33:31,255 --> 02:33:32,923 RESEARCH ON EMPLOYMENT AND FOCUS 3330 02:33:32,923 --> 02:33:35,025 COMES FROM THE U.K. AND 3331 02:33:35,025 --> 02:33:37,227 AUSTRALIA AND OTHER COUNTRIES. 3332 02:33:37,227 --> 02:33:39,897 WE HAVE A GAP SOMETIMES IN SOME 3333 02:33:39,897 --> 02:33:41,031 OF THAT RESEARCH HERE IN THE 3334 02:33:41,031 --> 02:33:41,231 U.S. 3335 02:33:41,231 --> 02:33:43,500 I THINK IT WOULD HINDER US A LOT 3336 02:33:43,500 --> 02:33:45,769 IF WE WEREN'T ABLE TO HAVE THOSE 3337 02:33:45,769 --> 02:33:49,406 STUDIES 3338 02:33:49,406 --> 02:33:55,312 STUDIES FROM OUTSIDE THE U.S. 3339 02:33:55,312 --> 02:34:00,651 >> Josh: THANK YOU. 3340 02:34:00,651 --> 02:34:00,918 IASHA. 3341 02:34:00,918 --> 02:34:04,755 >> MY STUDIES ARE IN DENMARK AND 3342 02:34:04,755 --> 02:34:06,023 FUNDED BY NIH. 3343 02:34:06,023 --> 02:34:07,724 WE SHOULDN'T DISCOUNT STUDIES 3344 02:34:07,724 --> 02:34:08,926 JUST BECAUSE THEY'RE OUTSIDE THE 3345 02:34:08,926 --> 02:34:10,427 UNITED STATES AND I WANT TO PUT 3346 02:34:10,427 --> 02:34:12,429 IN A PLUG FOR THE BIOLOGY 3347 02:34:12,429 --> 02:34:14,131 STUDIES LAST YEAR BECAUSE LAST 3348 02:34:14,131 --> 02:34:16,300 YEAR Y'ALL KIND OF TOSSED THOSE 3349 02:34:16,300 --> 02:34:18,035 OUT AND THEY'RE IMPORTANT TO ME 3350 02:34:18,035 --> 02:34:20,437 IF YOU CONSIDER THE BIOLOGICAL 3351 02:34:20,437 --> 02:34:21,205 STUDIES THIS YEAR I'D APPRECIATE 3352 02:34:21,205 --> 02:34:21,371 IT. 3353 02:34:21,371 --> 02:34:22,039 THANK YOU. 3354 02:34:22,039 --> 02:34:23,073 >> Josh: THANK YOU. 3355 02:34:23,073 --> 02:34:24,041 ALL RIGHT. 3356 02:34:24,041 --> 02:34:25,909 WE ARE ON TO THE LAST SECTION 3357 02:34:25,909 --> 02:34:28,946 WHICH IS THE INFRASTRUCTURE AND 3358 02:34:28,946 --> 02:34:31,148 PREVALENCE PAGES 32 THROUGH THE 3359 02:34:31,148 --> 02:34:31,481 END. 3360 02:34:31,481 --> 02:34:35,052 NUMBER 70 THROUGH 76. 3361 02:34:35,052 --> 02:34:38,021 ANY COMMENTS POINTS TO BRING UP 3362 02:34:38,021 --> 02:34:44,561 IN THAT COLLECTION? 3363 02:34:44,561 --> 02:34:45,462 >> DINA. 3364 02:34:45,462 --> 02:34:47,764 I WANT TO TALK ABOUT ARTICLE 72. 3365 02:34:47,764 --> 02:34:53,904 I WANT TO POINT OUT ONE SPECIFIC 3366 02:34:53,904 --> 02:34:58,141 POINT IT SAYS THE LARGEST 3367 02:34:58,141 --> 02:35:00,978 INCREASE IN MEDICAID UPTAKE OVER 3368 02:35:00,978 --> 02:35:04,147 THE NINE YEARS WAS IN THE 25 TO 3369 02:35:04,147 --> 02:35:06,016 34-YEAR-OLD RANGE AND I THINK 3370 02:35:06,016 --> 02:35:07,618 THAT'S SIGNIFICANT BECAUSE 3371 02:35:07,618 --> 02:35:10,954 THAT'S THE AGE AS SOMEBODY WHO 3372 02:35:10,954 --> 02:35:12,089 HELPS PEOPLE GET ON SOCIAL 3373 02:35:12,089 --> 02:35:12,956 SECURITY DISABILITY AND WHEN 3374 02:35:12,956 --> 02:35:14,858 PARENTS SAY THIS ISN'T WORKING. 3375 02:35:14,858 --> 02:35:16,793 WE TRIED COLLEGE, DIDN'T WORK. 3376 02:35:16,793 --> 02:35:18,428 WE TRIED EMPLOYMENT, HASN'T 3377 02:35:18,428 --> 02:35:20,464 WORKED AND THAT'S THE AGE AROUND 3378 02:35:20,464 --> 02:35:22,866 25 IS THE POINT WHERE A LOT OF 3379 02:35:22,866 --> 02:35:25,002 PEOPLE HAVE TO DEFER TO SYSTEMS. 3380 02:35:25,002 --> 02:35:27,771 I THINK THAT'S A SIGNIFICANT 3381 02:35:27,771 --> 02:35:29,072 STATISTICAL PIECE OF EVIDENCE 3382 02:35:29,072 --> 02:35:31,174 THERE FOR US TO WEIGH IN REGARD 3383 02:35:31,174 --> 02:35:37,948 TO POLICY AND SAYSABILITY. 3384 02:35:37,948 --> 02:35:38,715 >> Josh: THANK YOU. 3385 02:35:38,715 --> 02:35:39,683 -- ACCESSIBILITY. 3386 02:35:39,683 --> 02:35:40,651 >> Josh: THANK YOU. 3387 02:35:40,651 --> 02:35:43,453 THIS IS THE INCREASE IN THE 3388 02:35:43,453 --> 02:35:45,355 PREVALENCE OF OPTIMISM IN 3389 02:35:45,355 --> 02:35:49,660 MEDICAID AND ENROLLED ADULTS. 3390 02:35:49,660 --> 02:35:54,731 I DON'T WANT TO BE POLIANAISH 3391 02:35:54,731 --> 02:35:56,667 BUT IT MAY BE WORKING IF MORE 3392 02:35:56,667 --> 02:35:58,869 ARE GETTING IN MEDICAID BUT IT'S 3393 02:35:58,869 --> 02:36:01,004 WORKING AND I DON'T SEE A STATE 3394 02:36:01,004 --> 02:36:02,639 BY STATE ANALYSIS. 3395 02:36:02,639 --> 02:36:05,776 WE HAVE OTHER RESEARCH NIMH HAS 3396 02:36:05,776 --> 02:36:07,978 DONE WHERE MEDICAID HAS BEEN 3397 02:36:07,978 --> 02:36:09,846 EXPANDED AND SEE BETTER 3398 02:36:09,846 --> 02:36:10,814 ACCESSIBILITY OF BETTER HEALTH 3399 02:36:10,814 --> 02:36:13,417 CARE AND DON'T KNOW IF THE 3400 02:36:13,417 --> 02:36:23,660 SUBANALYSES ARE IN THE PAPER. 3401 02:36:23,660 --> 02:36:23,894 JAELYNN. 3402 02:36:23,894 --> 02:36:27,331 >> THIS GOES TO WHAT YOU'RE 3403 02:36:27,331 --> 02:36:30,567 TALKING ABOUT, LONGITUDINAL 3404 02:36:30,567 --> 02:36:32,970 STUDIES AND THE PROFOUND AUTISM 3405 02:36:32,970 --> 02:36:33,937 IS BECOMING MORE IN THE 3406 02:36:33,937 --> 02:36:35,739 CONVERSATION BUT WE DON'T HAVE 3407 02:36:35,739 --> 02:36:39,343 ANY IDEA ABOUT WHAT HAPPENS WITH 3408 02:36:39,343 --> 02:36:41,178 CHILDREN AND FOR A LACK OF A 3409 02:36:41,178 --> 02:36:43,146 BETTER TERM, DO PEOPLE MATURE OR 3410 02:36:43,146 --> 02:36:46,316 GROW OUT OF PARTICULAR TYPES OF 3411 02:36:46,316 --> 02:36:51,488 BEHAVIORS AND IS THAT BECAUSE OF 3412 02:36:51,488 --> 02:36:53,156 PHYSICAL OR EMOTIONAL BRAIN 3413 02:36:53,156 --> 02:36:55,425 FUNCTIONS, WE DON'T KNOW. 3414 02:36:55,425 --> 02:36:57,594 IT'S HARD TO PROVIDE RESOURCES 3415 02:36:57,594 --> 02:36:59,396 UNLESS WE UNDERSTAND MORE ABOUT 3416 02:36:59,396 --> 02:36:59,696 IT. 3417 02:36:59,696 --> 02:37:02,032 THINGS LIKE THIS AND GOING INTO 3418 02:37:02,032 --> 02:37:05,035 LONGITUDINAL AREAS TO UNDERSTAND 3419 02:37:05,035 --> 02:37:07,304 WHAT THE IMPLICATIONS ARE FOR 3420 02:37:07,304 --> 02:37:10,407 THE INDIVIDUAL THROUGH THE LIFE 3421 02:37:10,407 --> 02:37:10,874 SPAN. 3422 02:37:10,874 --> 02:37:11,141 THANK YOU. 3423 02:37:11,141 --> 02:37:16,680 >> Josh: MORENIKE DO YOU HAVE 3424 02:37:16,680 --> 02:37:17,047 ANOTHER COMMENT? 3425 02:37:17,047 --> 02:37:21,084 >> THANK YOU FOR INSIGHTS AND 3426 02:37:21,084 --> 02:37:28,325 CONCUR WITH THE COMMENTS ABOUT 3427 02:37:28,325 --> 02:37:29,826 SELF-INJURY AND CLARIFIED HER 3428 02:37:29,826 --> 02:37:30,027 NAME. 3429 02:37:30,027 --> 02:37:37,534 >> Josh: ANY OTHER COMMENTS. 3430 02:37:37,534 --> 02:37:37,834 OKAY. 3431 02:37:37,834 --> 02:37:38,869 THANK YOU VERY MUCH FOR YOUR 3432 02:37:38,869 --> 02:37:40,670 CONSIDERED DISCUSSION OF THESE 3433 02:37:40,670 --> 02:37:43,774 NOMINATIONS AND AS SUSAN 3434 02:37:43,774 --> 02:37:45,075 MENTIONED, OUR NEXT TASK WILL BE 3435 02:37:45,075 --> 02:37:47,978 TO VOTE ON THEM TO PLEASE IF 3436 02:37:47,978 --> 02:37:49,780 YOU'VE BEEN TAKING NOTES JOT 3437 02:37:49,780 --> 02:37:51,081 THINGS DOWN NOW TO TAKE THE 3438 02:37:51,081 --> 02:37:51,782 COMMENTS IN CONSIDERATION. 3439 02:37:51,782 --> 02:37:54,384 I KNOW I'VE BEEN DOING IT. 3440 02:37:54,384 --> 02:37:56,086 AND WHEN YOU DO FILE YOUR VOTES 3441 02:37:56,086 --> 02:37:57,254 IN THE NEXT COUPLE OF WEEKS. 3442 02:37:57,254 --> 02:37:59,823 I'LL TURN IT BACK OVER TO SUSAN 3443 02:37:59,823 --> 02:38:00,657 TO CLOSE OUT THE COMMITTEE 3444 02:38:00,657 --> 02:38:02,059 BUSINESS SECTION AND TELL US 3445 02:38:02,059 --> 02:38:03,226 ABOUT LUNCH. 3446 02:38:03,226 --> 02:38:04,294 >> Susan: THANK YOU FOR A GREAT 3447 02:38:04,294 --> 02:38:06,029 DISCUSSION ON THE NOMINATIONS 3448 02:38:06,029 --> 02:38:07,464 AND WE WERE CAREFULLY LISTENING 3449 02:38:07,464 --> 02:38:08,365 TO FEEDBACK. 3450 02:38:08,365 --> 02:38:12,502 WE'LL DO OUR BEST TO TRY TO 3451 02:38:12,502 --> 02:38:14,104 INCORPORATE FEEDBACK WHERE 3452 02:38:14,104 --> 02:38:17,974 POSSIBLE AND MAKE THINGS AS 3453 02:38:17,974 --> 02:38:19,076 ACCESSIBLE AS THEY CAN BE. 3454 02:38:19,076 --> 02:38:21,411 NEXT IS LUNCH, EVERYONE'S 3455 02:38:21,411 --> 02:38:23,780 FAVORITE CISION SESSION. 3456 02:38:23,780 --> 02:38:26,416 WE HAVE THE PIKE AND ROSE ACROSS 3457 02:38:26,416 --> 02:38:28,819 THE STREET WHERE THERE'S 3458 02:38:28,819 --> 02:38:30,487 RESTAURANTS FOR THOSE WHO DON'T 3459 02:38:30,487 --> 02:38:32,055 HAVE A LUNCH AND IF YOU ORDERED 3460 02:38:32,055 --> 02:38:33,723 LUNCH IT'S BEING DELIVERED AND 3461 02:38:33,723 --> 02:38:35,992 YOU CAN PROBABLY GO OUT TO THE 3462 02:38:35,992 --> 02:38:37,427 FRONT AND THEY'LL BE ABLE TO 3463 02:38:37,427 --> 02:38:39,129 HELP YOU WITH THAT AND TOLD 3464 02:38:39,129 --> 02:38:41,731 WE'RE ALLOWED TO EAT IN HERE AND 3465 02:38:41,731 --> 02:38:43,467 IN EAT IN SOME OF THE ROOMS IN 3466 02:38:43,467 --> 02:38:45,469 THE CORRIDOR IF YOU'D LIKE TO 3467 02:38:45,469 --> 02:38:45,936 USE THAT. 3468 02:38:45,936 --> 02:38:52,742 ANYTHING ELSE I NEED TO MENTION? 3469 02:38:52,742 --> 02:38:55,879 >> AT 1:45 PLEASE BE BACK 3470 02:38:55,879 --> 02:38:56,913 PROMPTLY BECAUSE WE HAVE THREE 3471 02:38:56,913 --> 02:39:02,018 ORAL COMMENTS AND REVIEW OF THE 3472 02:39:02,018 --> 02:39:03,453 WRITTEN COMMENT AND THE WANT TO 3473 02:39:03,453 --> 02:39:04,287 HAVE DISCUSSION AND LOOK FORWARD 3474 02:39:04,287 --> 02:39:09,025 TO SEEING YOU BACK AT 1:45. 3475 02:39:09,025 --> 02:39:09,526 >> THANK YOU, EVERYBODY. 3476 02:39:09,526 --> 02:39:09,593 3477 02:39:32,484 --> 02:39:34,420 WE ARE NOW GOING TO PROCEED INTO 3478 02:39:34,420 --> 02:39:37,256 OUR ORAL PUBLIC COMMENT SESSION. 3479 02:39:37,256 --> 02:39:39,558 WE WILL HAVE THREE ORAL 3480 02:39:39,558 --> 02:39:40,926 COMMENTERS AS WELL AS A SUMMARY 3481 02:39:40,926 --> 02:39:41,994 OF THE WRITTEN AND COMMITTEE 3482 02:39:41,994 --> 02:39:48,634 DISCUSSIONS. 3483 02:39:48,634 --> 02:39:51,103 I WANT TO WELCOME OUR ORAL 3484 02:39:51,103 --> 02:39:51,403 COMMENTERS. 3485 02:39:51,403 --> 02:39:53,005 THEY'RE ALL ONLINE. 3486 02:39:53,005 --> 02:39:58,377 OKAY. 3487 02:39:58,377 --> 02:39:59,345 WE'RE GOING TO ASK EACH OF TO 3488 02:39:59,345 --> 02:40:01,080 YOU MAKE YOUR COMMENTS AND HOLD 3489 02:40:01,080 --> 02:40:02,715 YOUR COMMENTS TO THREE MINUTES 3490 02:40:02,715 --> 02:40:04,984 TO MAKE SURE EACH OF OUR 3491 02:40:04,984 --> 02:40:06,619 COMMENTERS HAVE TIME TO SPEAK 3492 02:40:06,619 --> 02:40:07,987 AND THEN WE HEAR OUR WRITTEN 3493 02:40:07,987 --> 02:40:12,024 COMMENTS AND WE HAVE TIME FOR 3494 02:40:12,024 --> 02:40:22,368 THE IACC TO DISCUSS. 3495 02:40:24,203 --> 02:40:34,613 WE HAVE NICOLE, ANTHONY AND 3496 02:40:39,151 --> 02:40:39,485 JORDYN. 3497 02:40:39,485 --> 02:40:46,558 >> I'M NICOLE CORRADO BASED IN 3498 02:40:46,558 --> 02:40:49,795 MONTREAL, QUÉBEC, CANADIAN AND I 3499 02:40:49,795 --> 02:40:52,998 WAS SO FRUSTRATED WITH THE 3500 02:40:52,998 --> 02:40:55,968 SYSTEMS WHEN I LIVED BACK IN 3501 02:40:55,968 --> 02:40:59,605 TORONTO THE JOINED THE TORONTO 3502 02:40:59,605 --> 02:41:00,272 POLICE SERVICES IMPLEMENTATION 3503 02:41:00,272 --> 02:41:03,208 TEAM AS A CIVILIAN ADVISER AND 3504 02:41:03,208 --> 02:41:05,344 NOW WORKING ON A STUDY REGARDING 3505 02:41:05,344 --> 02:41:07,980 BEHAVIOR WITH THE UNIVERSITY OF 3506 02:41:07,980 --> 02:41:08,247 WATER LOO. 3507 02:41:08,247 --> 02:41:09,982 I HOPE TO KEEP IN TOUCH WITH THE 3508 02:41:09,982 --> 02:41:12,051 IACC REGARDING AUTISM, JUSTICE 3509 02:41:12,051 --> 02:41:15,120 AND CASE MANAGEMENT SITUATIONS 3510 02:41:15,120 --> 02:41:18,724 LIKE AND MISSING PERSON CASES. 3511 02:41:18,724 --> 02:41:20,125 MOST RESEARCH ON MISSING PERSONS 3512 02:41:20,125 --> 02:41:21,360 REGARDS HYPERACTIVE CHILDREN 3513 02:41:21,360 --> 02:41:23,595 WANDERING OFF AND DOES NOT 3514 02:41:23,595 --> 02:41:24,530 INTERVIEW AUTISTIC PERSONS ON 3515 02:41:24,530 --> 02:41:25,698 THEIR PERSPECTIVES. 3516 02:41:25,698 --> 02:41:31,236 AS A RESULT, DATA IS LITTLE TO 3517 02:41:31,236 --> 02:41:35,040 NON-EXISTENT IN NEURAL DIVERSITY 3518 02:41:35,040 --> 02:41:37,276 AND RESEARCHING THIS AND WOULD 3519 02:41:37,276 --> 02:41:41,013 LIKE TO KEEP IN TOUCH WITH THE 3520 02:41:41,013 --> 02:41:41,280 DATA. 3521 02:41:41,280 --> 02:41:43,549 MY FRUSTRATION IS WAS IN 2006 IN 3522 02:41:43,549 --> 02:41:44,950 REGARDS TO MENTAL AGE THEORY. 3523 02:41:44,950 --> 02:41:48,020 IT MUST BE AVOIDED AT ALL COSTS 3524 02:41:48,020 --> 02:41:51,490 AND CAN BE WE PLACED WITH MORE 3525 02:41:51,490 --> 02:41:52,991 RESPECTFUL TERMS LIKE SUPPORT 3526 02:41:52,991 --> 02:41:56,829 NEEDS AND IVANOVA SMITH HAS A 3527 02:41:56,829 --> 02:42:02,034 GREAT YOUTUBE VIDEO ON THAT 3528 02:42:02,034 --> 02:42:11,944 SUBJECT. 3529 02:42:11,944 --> 02:42:14,346 NO ONE WANTS THEIR PROFILE 3530 02:42:14,346 --> 02:42:16,148 GOOGLED AND IT'S THE FIRST 3531 02:42:16,148 --> 02:42:17,182 NO-GENDER MODEL AND IT'S 3532 02:42:17,182 --> 02:42:19,418 IMPORTANT FOR PEOPLE WHO ONLY 3533 02:42:19,418 --> 02:42:23,122 HAVE FIRST NAMES LIKE SOME 3534 02:42:23,122 --> 02:42:24,223 INDIGENOUS PEOPLE ONLY HAVE 3535 02:42:24,223 --> 02:42:26,759 FIRST NAMES AND THE FIRST-NAME 3536 02:42:26,759 --> 02:42:29,027 NO-GENDER MODEL STARTED AFTER 3537 02:42:29,027 --> 02:42:30,362 MISSING TRANSGENDER PERSONS WERE 3538 02:42:30,362 --> 02:42:32,431 BEING MISIDENTIFIED AS THE WRONG 3539 02:42:32,431 --> 02:42:36,101 GENDER AND HAPPY TORONTO IS 3540 02:42:36,101 --> 02:42:43,175 MOVING FORWARD ON THIS. 3541 02:42:43,175 --> 02:42:46,812 PLEASE CONTACT AUTISTIC PERSONS 3542 02:42:46,812 --> 02:42:47,346 WHENEVER POSSIBLE WHEN 3543 02:42:47,346 --> 02:42:48,046 DEVELOPING POLICE AND PUBLIC 3544 02:42:48,046 --> 02:42:51,984 SAFETY POLICIES. 3545 02:42:51,984 --> 02:42:54,052 PEOPLE GO MISSING FOR MANY 3546 02:42:54,052 --> 02:42:55,087 REASONS. 3547 02:42:55,087 --> 02:42:56,388 SOME PEOPLE GO MISSING BECAUSE 3548 02:42:56,388 --> 02:42:59,525 OF ABUSE AT HOME AND ONE OF THE 3549 02:42:59,525 --> 02:43:04,997 THINGS I POINT TO IS THAT WOMEN 3550 02:43:04,997 --> 02:43:09,001 SHELTERS MUST BE MADE ANNIMAL 3551 02:43:09,001 --> 02:43:11,703 FRIENDLY AND MANY DON'T WANT TO 3552 02:43:11,703 --> 02:43:13,005 LEAVE THEIR SITUATION DUE TO 3553 02:43:13,005 --> 02:43:15,808 THEIR ANIMAL SAFETY. 3554 02:43:15,808 --> 02:43:18,076 THERE'S A PROJECT CALLED PURPOSE 3555 02:43:18,076 --> 02:43:20,145 LEASH PROJECT IN CANADA. 3556 02:43:20,145 --> 02:43:24,349 THEY HAVE SIMILAR THINGS IN THE 3557 02:43:24,349 --> 02:43:28,253 UNITED STATES. 3558 02:43:28,253 --> 02:43:30,055 MANY PARTS OF CANADA IN THE 3559 02:43:30,055 --> 02:43:31,957 UNITED STATES HAVE VULNERABLE 3560 02:43:31,957 --> 02:43:32,991 PERSONS REGISTRIES. 3561 02:43:32,991 --> 02:43:34,593 THERE'S DIFFERENT VIEWS ON SUCH 3562 02:43:34,593 --> 02:43:34,927 REGISTRIES. 3563 02:43:34,927 --> 02:43:36,895 I CHOOSE TO BE ONLY THEM BUT 3564 02:43:36,895 --> 02:43:38,363 SOME PEOPLE DON'T WANT TO BE. 3565 02:43:38,363 --> 02:43:40,966 NOT BEING ON A REGISTRY SHOULD 3566 02:43:40,966 --> 02:43:44,603 NOT CAUSE A MISSING PERSON TO BE 3567 02:43:44,603 --> 02:43:45,237 DEPRIORITIZED. 3568 02:43:45,237 --> 02:43:47,806 VULNERABLE PERSON REGISTRIES 3569 02:43:47,806 --> 02:43:51,877 MUST BE FULLY VOLUNTARY WHENEVER 3570 02:43:51,877 --> 02:43:53,612 POSSIBLE, FREE, EASY 3571 02:43:53,612 --> 02:43:54,413 SELF-REGISTRATION FOR PEOPLE 3572 02:43:54,413 --> 02:43:56,982 WITH A LOT OF AUTONOMY AND BE 3573 02:43:56,982 --> 02:44:02,254 SEPARATE FROM INCIDENT REPORT 3574 02:44:02,254 --> 02:44:08,994 SOFTWARE SO THEY NEED TO BE 3575 02:44:08,994 --> 02:44:10,028 WRITTEN IN PLAIN LANGUAGE. 3576 02:44:10,028 --> 02:44:14,166 >> Josh: MS. CORRADO, THANK YOU 3577 02:44:14,166 --> 02:44:15,801 BUT COULD YOU PLEASE WRAP UP. 3578 02:44:15,801 --> 02:44:17,769 >> I'D LIKE TO TALK TO YOU MORE 3579 02:44:17,769 --> 02:44:18,303 ON THIS SUBJECT. 3580 02:44:18,303 --> 02:44:20,606 >> Josh: WE APPRECIATE YOUR 3581 02:44:20,606 --> 02:44:21,173 INPUT. 3582 02:44:21,173 --> 02:44:23,642 >> YOU'RE WELCOME. 3583 02:44:23,642 --> 02:44:26,111 >> Josh: NEXT I'LL ASK ANTHONY 3584 02:44:26,111 --> 02:44:27,813 TUCCI TO UNMUTE. 3585 02:44:27,813 --> 02:44:28,313 THANK YOU VERY MUCH. 3586 02:44:28,313 --> 02:44:29,982 >> THANK YOU FOR THE OPPORTUNITY 3587 02:44:29,982 --> 02:44:31,750 TO PRESENT ORAL COMMENTS TODAY 3588 02:44:31,750 --> 02:44:32,985 ON THE PARENT OF A 20-YEAR-OLD 3589 02:44:32,985 --> 02:44:36,021 SON WHO HAS AUTISM AND IS A 3590 02:44:36,021 --> 02:44:36,321 NON-SPEAKER. 3591 02:44:36,321 --> 02:44:40,626 MY COMMENTS TODAY WILL FOCUS ON 3592 02:44:40,626 --> 02:44:41,193 THE APPROPRIATE INTERPLAY 3593 02:44:41,193 --> 02:44:42,561 BETWEEN COMMUNICATION SCIENCE 3594 02:44:42,561 --> 02:44:44,196 ADVOCACY AND THE ADVOCACY FOR 3595 02:44:44,196 --> 02:44:46,331 THE PROTECTION OF COMMUNICATION 3596 02:44:46,331 --> 02:44:47,699 RIGHTS. 3597 02:44:47,699 --> 02:44:49,935 THIS TOPIC HAS BECOME HIGHLY 3598 02:44:49,935 --> 02:44:58,544 RELEVANT DUE TO THE FACT 3599 02:44:58,544 --> 02:44:59,311 DISAGREEMENTS HAVE GIVEN 3600 02:44:59,311 --> 02:45:01,113 SCIENTIFIC ADVOCACY ATTACKING 3601 02:45:01,113 --> 02:45:04,983 INDIVIDUALS WITH AUTISM WHO USE 3602 02:45:04,983 --> 02:45:06,251 COMMUNICATION METHODS SOME CLAIM 3603 02:45:06,251 --> 02:45:08,520 TO LACK VALIDATION. 3604 02:45:08,520 --> 02:45:14,259 TO PROTECT THE HUMAN RIGHTS OF 3605 02:45:14,259 --> 02:45:16,428 INDIVIDUALS SCIENCE CAN PROPERLY 3606 02:45:16,428 --> 02:45:19,831 ENLIGHTEN THE FIELD OF AUTISM 3607 02:45:19,831 --> 02:45:20,599 WITHOUT COMPROMISING 3608 02:45:20,599 --> 02:45:21,967 COMMUNICATION RIGHTS. 3609 02:45:21,967 --> 02:45:24,603 IN EXPLORING THIS CHALLENGE I'LL 3610 02:45:24,603 --> 02:45:28,740 BEGIN BY HIGHLIGHTING THE 3611 02:45:28,740 --> 02:45:30,442 ESSENTIAL ROLE SCIENTIFIC 3612 02:45:30,442 --> 02:45:32,811 RESEARCH PLAYS IN COMMUNICATION 3613 02:45:32,811 --> 02:45:33,145 INTERVENTIONS. 3614 02:45:33,145 --> 02:45:37,215 COMMUNICATION IS A FUNDAMENTAL 3615 02:45:37,215 --> 02:45:39,851 FEATURE OF HUMANITY AND 3616 02:45:39,851 --> 02:45:42,721 EFFECTIVE APPROACH S HELP 3617 02:45:42,721 --> 02:45:44,089 INDIVIDUALS WITH SEVERE 3618 02:45:44,089 --> 02:45:44,756 COMMUNICATION CHALLENGE HOWEVER, 3619 02:45:44,756 --> 02:45:47,559 RESEARCH PROCESS IS SLOW, MANY 3620 02:45:47,559 --> 02:45:49,728 RESEARCH GAPS CONTINUE TO EXIST. 3621 02:45:49,728 --> 02:45:52,831 TO MEANINGFULLY ADDRESS THE 3622 02:45:52,831 --> 02:45:53,932 SHORT COMINGS THE COMMUNICATION 3623 02:45:53,932 --> 02:45:54,800 SCIENCE INDUSTRY SHOULD 3624 02:45:54,800 --> 02:45:57,502 COLLABORATE AND ENGAGE WITH 3625 02:45:57,502 --> 02:45:58,170 CROSS-DISCIPLINARY RESEARCH WITH 3626 02:45:58,170 --> 02:46:03,108 A BROAD AWAY OF MEDICAL 3627 02:46:03,108 --> 02:46:05,043 DISCIPLINE TO REPLACE RESEARCH 3628 02:46:05,043 --> 02:46:07,579 GAPS WITH GENUINE WISDOM FROM 3629 02:46:07,579 --> 02:46:09,715 THIS REQUIRED INTEGRATIVE 3630 02:46:09,715 --> 02:46:10,148 APPROACH. 3631 02:46:10,148 --> 02:46:14,086 RECENT NIDC CONFERENCE THAT 3632 02:46:14,086 --> 02:46:15,954 FOCUSSED ON EXPLORING RESEARCH 3633 02:46:15,954 --> 02:46:16,922 CONNECTIONS REPRESENTS A GREAT 3634 02:46:16,922 --> 02:46:17,723 STEP IN THIS DIRECTION. 3635 02:46:17,723 --> 02:46:21,727 NEXT I WANT TO SHOWCASE HOW 3636 02:46:21,727 --> 02:46:23,395 UNBOUNDED SCIENTIFIC ADVOCACY 3637 02:46:23,395 --> 02:46:24,730 HAS COMPROMISED AND IMPAIRED THE 3638 02:46:24,730 --> 02:46:27,265 HUMAN AND CIVIL RIGHTS OF 3639 02:46:27,265 --> 02:46:28,700 DEVELOPS WITH AUTISM. 3640 02:46:28,700 --> 02:46:32,337 CONVENTIONAL WISDOM ALLOWS US TO 3641 02:46:32,337 --> 02:46:33,672 REASONABLY CONCLUDE THE 3642 02:46:33,672 --> 02:46:35,307 APPLICATION OF SCIENCE AND THE 3643 02:46:35,307 --> 02:46:36,408 GREAT POTENTIAL FOR SCIENTIFIC 3644 02:46:36,408 --> 02:46:38,076 PROGRESS WILL LEAD TO 3645 02:46:38,076 --> 02:46:40,979 IMPROVEMENTS OF TO THE HUMAN 3646 02:46:40,979 --> 02:46:41,546 CONDITION. 3647 02:46:41,546 --> 02:46:44,916 HOWEVER, UNBOUNDED SCIENTIFIC 3648 02:46:44,916 --> 02:46:46,118 ADVOCACY LIMITS COMMUNICATION 3649 02:46:46,118 --> 02:46:46,885 RIGHTS. 3650 02:46:46,885 --> 02:46:48,520 DEPRIVES INDIVIDUALS OF THEIR 3651 02:46:48,520 --> 02:46:50,455 DIGNITY AND AUTONOMY AND 3652 02:46:50,455 --> 02:46:51,923 REPRESENTS A FORM OF SCIENCE AND 3653 02:46:51,923 --> 02:46:53,825 IT'S GREATEST DISCONTENTS. 3654 02:46:53,825 --> 02:46:57,262 A SELECT GROUP OF SO-CALLED 3655 02:46:57,262 --> 02:47:00,065 SCIENTIFIC ADVOCATES INTERFERE 3656 02:47:00,065 --> 02:47:02,968 IN THE LIVES OF CERTAIN 3657 02:47:02,968 --> 02:47:04,102 MINIMALLY VERBAL AND NON 3658 02:47:04,102 --> 02:47:07,706 SPEAKERS WHO HAVE A SELECTED 3659 02:47:07,706 --> 02:47:08,974 PREFERRED MODE OF COMMUNICATION 3660 02:47:08,974 --> 02:47:11,443 OPPONENTS DO NOT SUPPORT AND 3661 02:47:11,443 --> 02:47:13,178 CLAIM THESE METHODS DO NOT 3662 02:47:13,178 --> 02:47:15,047 QUALIFY TO BE PROTECTED AS HUMAN 3663 02:47:15,047 --> 02:47:18,050 RIGHTS BECAUSE ONE, THEY LACK 3664 02:47:18,050 --> 02:47:21,353 SUFFICIENT VALIDATION, TWO, ARE 3665 02:47:21,353 --> 02:47:22,888 PROP DEPENDENT AND WILL NOT 3666 02:47:22,888 --> 02:47:25,190 RESULT IN INDEPENDENT 3667 02:47:25,190 --> 02:47:25,524 COMMUNICATION. 3668 02:47:25,524 --> 02:47:26,191 HOWEVER, THESE REQUIREMENTS ARE 3669 02:47:26,191 --> 02:47:28,760 NOT SUPPORTED BY THE HUMAN 3670 02:47:28,760 --> 02:47:30,495 RIGHTS CONVENTION. 3671 02:47:30,495 --> 02:47:33,298 ARE DISCRIMINATORY AND VIOLATE 3672 02:47:33,298 --> 02:47:34,666 THE AMERICANS WITH DISABILITY 3673 02:47:34,666 --> 02:47:36,034 ACT. 3674 02:47:36,034 --> 02:47:40,105 SIMPLY STATE THE SCIENTIFIC 3675 02:47:40,105 --> 02:47:40,972 COMMUNITY IS NOT THE APPROPRIATE 3676 02:47:40,972 --> 02:47:43,108 GATE KEEPER OF HUMAN RIGHTS AND 3677 02:47:43,108 --> 02:47:43,975 DO NOT POSSESS THE KNOWLEDGE OR 3678 02:47:43,975 --> 02:47:45,343 LEGAL AUTHORITY TO DEFINE OR 3679 02:47:45,343 --> 02:47:48,714 REDEFINE THE PARAMETERS THAT 3680 02:47:48,714 --> 02:47:50,082 INDIVIDUALS WITH AUTISM MUST 3681 02:47:50,082 --> 02:47:52,818 SATISFY TO BE PERMITTED TO THEIR 3682 02:47:52,818 --> 02:47:54,753 COMMUNICATION RIGHTS. 3683 02:47:54,753 --> 02:47:58,156 A WORLD-EXPERT ON DISABILITY LAW 3684 02:47:58,156 --> 02:48:03,762 AND POLICY HAS OPINED THE HUMAN 3685 02:48:03,762 --> 02:48:04,863 CONVENTION ON THE RIGHTS OF 3686 02:48:04,863 --> 02:48:06,798 DISABILITY IS AIMED AT EXTENDING 3687 02:48:06,798 --> 02:48:10,268 PERSON WITH DISABILITIES 3688 02:48:10,268 --> 02:48:11,636 AVAILABLE OPTIONS NOT 3689 02:48:11,636 --> 02:48:12,938 CIRCUMSCRIBING THEM AND 3690 02:48:12,938 --> 02:48:14,072 DEMANDING RESPECT FOR THEIR 3691 02:48:14,072 --> 02:48:15,874 CHOICES NOT OVERRIDING THEM. 3692 02:48:15,874 --> 02:48:18,376 IN THE SAME SPIRIT THE ADA SERVE 3693 02:48:18,376 --> 02:48:21,012 TO ENSURE DISABLED INDIVIDUALS 3694 02:48:21,012 --> 02:48:22,347 ENJOY AN EFFECTIVE MODE OF 3695 02:48:22,347 --> 02:48:23,915 COMMUNICATION EQUAL TO THAT 3696 02:48:23,915 --> 02:48:26,985 ENJOYED BY NON-DISABLED 3697 02:48:26,985 --> 02:48:28,954 INDIVIDUALS AND SPECIFICALLY 3698 02:48:28,954 --> 02:48:30,055 REQUIRES PRIMARY CONSIDERATION 3699 02:48:30,055 --> 02:48:33,825 BE GIVEN TO A DISABLED 3700 02:48:33,825 --> 02:48:35,093 INDIVIDUAL'S COMMUNICATION 3701 02:48:35,093 --> 02:48:36,762 CHOICES AND PREFERENCES. 3702 02:48:36,762 --> 02:48:39,231 I OFFER THE FOLLOWING 3703 02:48:39,231 --> 02:48:40,532 RECOMMENDATIONS -- 3704 02:48:40,532 --> 02:48:42,367 >> Josh: THANK YOU, EXCUSE ME, 3705 02:48:42,367 --> 02:48:44,536 MR. TUCCI, IF YOU COULD WRAP UP, 3706 02:48:44,536 --> 02:48:44,803 PLEASE. 3707 02:48:44,803 --> 02:48:48,240 >> YES, I WILL. 3708 02:48:48,240 --> 02:48:51,777 THE FORMATION OF WORKSHOPS AND 3709 02:48:51,777 --> 02:48:53,712 COMMITTEES TO FORCE LEGAL AND 3710 02:48:53,712 --> 02:48:55,514 SCIENTIFIC COMMUNITY TO WORK 3711 02:48:55,514 --> 02:48:55,914 TOGETHER. 3712 02:48:55,914 --> 02:48:58,617 I PROPOSE AN ADDITIONAL 3713 02:48:58,617 --> 02:49:00,051 REGULATORY GUIDANCE BY THE 3714 02:49:00,051 --> 02:49:02,254 JUSTICE DEPARTMENT THAT WOULD 3715 02:49:02,254 --> 02:49:03,688 COMPEL THE SCIENTIFIC COMMUNITY 3716 02:49:03,688 --> 02:49:04,790 INCLUDING SPEECH AND LANGUAGE 3717 02:49:04,790 --> 02:49:06,591 PROFESSIONALS TO PROPERLY AND 3718 02:49:06,591 --> 02:49:08,994 FULLY DISCLOSE ALL COMMUNICATION 3719 02:49:08,994 --> 02:49:10,495 RIGHTS. 3720 02:49:10,495 --> 02:49:12,097 THANK YOU FOR THE OPPORTUNITY TO 3721 02:49:12,097 --> 02:49:13,765 SPEAK AND AN APPRECIATE ALL YOUR 3722 02:49:13,765 --> 02:49:17,035 ADVOCACY ON BEHALF OF 3723 02:49:17,035 --> 02:49:17,769 INDIVIDUALS WITH AUTISM. 3724 02:49:17,769 --> 02:49:19,504 >> THANK YOU VERY MUCH FOR YOUR 3725 02:49:19,504 --> 02:49:19,905 COMMENTS. 3726 02:49:19,905 --> 02:49:22,040 >> Josh: FINALLY, I'LL ASK 3727 02:49:22,040 --> 02:49:25,010 JORDAN JOHNSON TO UNMUTE AND TO 3728 02:49:25,010 --> 02:49:35,387 PRESENT YOUR COMMENTS. 3729 02:49:37,622 --> 02:49:44,996 >> HI, MY NAME IS JORDYN JENSON 3730 02:49:44,996 --> 02:49:49,601 THE DIRECTOR FOR REGIONAL 3731 02:49:49,601 --> 02:49:52,437 DISABILITY JUSTICE AND IN 3732 02:49:52,437 --> 02:49:55,340 RESPONSE TO THE IACC'S 2021 TO 3733 02:49:55,340 --> 02:49:59,644 2023 STRATEGIC PLAN IN THE SCOPE 3734 02:49:59,644 --> 02:50:01,880 OF THIS MEETING WE SUBMITTED A 3735 02:50:01,880 --> 02:50:04,416 PUBLIC LETTER OF INTERACTIONS 3736 02:50:04,416 --> 02:50:05,617 WITH AUTISTIC INDIVIDUALS WITH 3737 02:50:05,617 --> 02:50:07,018 LAW ENFORCEMENT. 3738 02:50:07,018 --> 02:50:08,787 WE'D LIKE TO SHARE 3739 02:50:08,787 --> 02:50:09,354 EVIDENCE-BASED RESEARCH TO 3740 02:50:09,354 --> 02:50:11,056 INFORM A RESPONSIBLE AND 3741 02:50:11,056 --> 02:50:11,823 EQUITABLE APPROACH TO ADDRESSING 3742 02:50:11,823 --> 02:50:14,359 THE COMMITTEE'S PRIORITIES AT 3743 02:50:14,359 --> 02:50:14,960 THE INTERSECTION OF RACE AND 3744 02:50:14,960 --> 02:50:17,662 DISABILITY MOVING FORWARD. 3745 02:50:17,662 --> 02:50:20,031 DISABLED PEOPLE ESPECIALLY 3746 02:50:20,031 --> 02:50:21,466 AUTISTIC PEOPLE HAVE HIGHER 3747 02:50:21,466 --> 02:50:23,001 RATES OF VICTIMIZATION INCREASES 3748 02:50:23,001 --> 02:50:26,004 THE LIKELIHOOD THEY'LL INTERACT 3749 02:50:26,004 --> 02:50:29,040 WITH LAW ENFORCEMENT AND THE 3750 02:50:29,040 --> 02:50:30,008 CRIMINAL JUSTICE SYSTEM AND 3751 02:50:30,008 --> 02:50:35,547 AUTISTIC PEOPLE MAY DEMONSTRATE 3752 02:50:35,547 --> 02:50:37,782 NON-NORMATIVE BEHAVIORS THAT CAN 3753 02:50:37,782 --> 02:50:40,986 CAUSE POLICE TO PERCEIVE THE 3754 02:50:40,986 --> 02:50:42,387 SITUATION AS THREATENING AND MAY 3755 02:50:42,387 --> 02:50:44,022 USE EXCESSIVE FORCE. 3756 02:50:44,022 --> 02:50:46,825 IN QUOTING OUR FOUNDING FACULTY 3757 02:50:46,825 --> 02:50:50,996 DIRECTOR IN PARTICULARLY HER 3758 02:50:50,996 --> 02:50:52,631 PAPER ON DISABILITIES, 3759 02:50:52,631 --> 02:50:53,231 DISABILITY RELATED BEHAVIORS 3760 02:50:53,231 --> 02:50:55,066 CREATE PATHWAYS TO EXCESSIVE 3761 02:50:55,066 --> 02:50:56,835 FORCE BY POLICE. 3762 02:50:56,835 --> 02:50:58,970 THIS IS TRUE WHEN FOR INSTANCE 3763 02:50:58,970 --> 02:51:01,006 DISABILITY IS CODED AS 3764 02:51:01,006 --> 02:51:02,908 THREATENING AND POTENTIALLY 3765 02:51:02,908 --> 02:51:04,976 DANGEROUS NOT BECAUSE OF ANY 3766 02:51:04,976 --> 02:51:08,847 ACTUAL THREAT OR DANGER BUT 3767 02:51:08,847 --> 02:51:09,814 BECAUSE OFFICERS INTERPRET 3768 02:51:09,814 --> 02:51:12,817 PEOPLE WITH BEHAVIORS THAT DO 3769 02:51:12,817 --> 02:51:16,855 NOT ALIGN WITH NORMATIVE SOCIAL 3770 02:51:16,855 --> 02:51:18,123 NORMS AND BLACK AMERICANS ARE 3771 02:51:18,123 --> 02:51:23,528 FIVE TIMES AS LIKELY TO REPORT, 3772 02:51:23,528 --> 02:51:26,164 UNFAIRLY STOPPED AND POLICE 3773 02:51:26,164 --> 02:51:27,032 DISPROPORTIONATELY USE FORCE 3774 02:51:27,032 --> 02:51:29,367 AGAINST COMMUNITIES OF COLOR. 3775 02:51:29,367 --> 02:51:31,670 IT'S ALSO IMPORTANT TO TAKE INTO 3776 02:51:31,670 --> 02:51:33,672 CONSIDERATION THE SOCIAL AND 3777 02:51:33,672 --> 02:51:34,306 HISTORICAL CONTEXT WITH WHICH 3778 02:51:34,306 --> 02:51:36,441 THE DISCUSSION IS TAKING PLACE. 3779 02:51:36,441 --> 02:51:38,009 POLICE HAVE A LONG AND 3780 02:51:38,009 --> 02:51:38,643 COMPLICATED HISTORY WHEN IT 3781 02:51:38,643 --> 02:51:41,479 COMES TO INTERACTIONS BASED ON 3782 02:51:41,479 --> 02:51:42,280 RACE AND DISABILITY RESPECTIVELY 3783 02:51:42,280 --> 02:51:44,983 AND ESPECIALLY WHERE THEY 3784 02:51:44,983 --> 02:51:48,286 INTERCEPT. 3785 02:51:48,286 --> 02:51:50,455 THROUGHOUT HISTORY POLICE ARE 3786 02:51:50,455 --> 02:51:53,425 BEEN USED FOR SOCIAL CONTROL AND 3787 02:51:53,425 --> 02:52:03,969 SEE IT EXHIBITED TODAY AND NAD 3788 02:52:05,070 --> 02:52:07,372 YAT CONSIDERATION IS MADE TO THE 3789 02:52:07,372 --> 02:52:09,908 RELATIONAL POWER AND GOING BACK 3790 02:52:09,908 --> 02:52:11,176 TO INTERACTION BETWEEN POLICING 3791 02:52:11,176 --> 02:52:13,111 50% OF PEOPLE KILLED BY POLICE 3792 02:52:13,111 --> 02:52:15,814 OFFICERS ARE DISABLED. 3793 02:52:15,814 --> 02:52:18,249 AND WHEN PEOPLE OF COLOR 3794 02:52:18,249 --> 02:52:19,284 AUTISTIC PEOPLE AND THOSE AT THE 3795 02:52:19,284 --> 02:52:20,485 INTERSECTION ARE KILLED AT THE 3796 02:52:20,485 --> 02:52:22,354 HANDS OF POLICE, JURISDICTIONS 3797 02:52:22,354 --> 02:52:25,290 TEND TO RESPOND WITH MORE POLICE 3798 02:52:25,290 --> 02:52:25,557 TRAINING. 3799 02:52:25,557 --> 02:52:29,027 SIMILARLY IN THE CONVERSATIONS 3800 02:52:29,027 --> 02:52:30,161 AROUND AUTISM AND SAFETY AUTISM 3801 02:52:30,161 --> 02:52:31,930 SPECIFIC TRAINING FOR LAW 3802 02:52:31,930 --> 02:52:34,165 ENFORCEMENT IS SEEN AS THE KEY 3803 02:52:34,165 --> 02:52:34,933 SOLUTION. 3804 02:52:34,933 --> 02:52:36,167 DESPITE POLICE DEPARTMENTS 3805 02:52:36,167 --> 02:52:39,971 INCREASING DISABILITY IN AN 3806 02:52:39,971 --> 02:52:41,039 UNCONSCIOUS BIAS TRAINING PEOPLE 3807 02:52:41,039 --> 02:52:44,075 OF COLOR CONTINUE TO BE MET BY 3808 02:52:44,075 --> 02:52:45,877 POLICE WITH FORCE, COERCION AND 3809 02:52:45,877 --> 02:52:46,845 EVEN DEATH. 3810 02:52:46,845 --> 02:52:49,347 WE NEED IT SHIFT FROM ADVOCATING 3811 02:52:49,347 --> 02:52:50,648 FOR MORE POLICE TRAINING AND 3812 02:52:50,648 --> 02:52:52,917 INVESTING IN COMMUNITIES AND AM 3813 02:52:52,917 --> 02:52:55,420 PLY FIGE VOICES OF AUTISTIC 3814 02:52:55,420 --> 02:52:57,055 PEOPLE OF COLOR. 3815 02:52:57,055 --> 02:52:58,256 ADDITIONALLY LAW ENFORCEMENT 3816 02:52:58,256 --> 02:52:59,824 TRAINING CAN REINFORCE 3817 02:52:59,824 --> 02:53:02,193 STEREOTYPES AND HEIGHTEN 3818 02:53:02,193 --> 02:53:04,996 BIASSED. 3819 02:53:04,996 --> 02:53:08,700 IN COUNTRIES WHERE POLICE CAN BE 3820 02:53:08,700 --> 02:53:10,435 TRAUMATIZING WITH AUTISTIC 3821 02:53:10,435 --> 02:53:12,637 PEOPLE ESPECIALLY OF COLOR AND 3822 02:53:12,637 --> 02:53:16,708 WE URGE THE IACC TO PRIORITIZE 3823 02:53:16,708 --> 02:53:18,743 VOICES OF DISABLED PEOPLE OF 3824 02:53:18,743 --> 02:53:19,744 COLOR AND INVOLVE THEM MORE IN 3825 02:53:19,744 --> 02:53:21,112 THE MEETINGS AND DISCUSSIONS. 3826 02:53:21,112 --> 02:53:22,380 FOR ANY CONVERSATION HAPPENING 3827 02:53:22,380 --> 02:53:24,516 ABOUT AUTISTIC PEOPLE, THEY 3828 02:53:24,516 --> 02:53:26,484 SHOULD BE RECOGNIZED AS THE 3829 02:53:26,484 --> 02:53:28,887 EXPERTS ON ISSUES DIRECTLY 3830 02:53:28,887 --> 02:53:29,654 IMPACTING THEM. 3831 02:53:29,654 --> 02:53:32,824 WE ALSO RECOGNIZE THAT CONCERNS 3832 02:53:32,824 --> 02:53:36,127 FOR AUTISTIC PEOPLE'S SAFETY 3833 02:53:36,127 --> 02:53:40,432 SAFETY ARE REAL AND IMPORTANT 3834 02:53:40,432 --> 02:53:43,268 AND OTHER SOLUTIONS SHOULD BE 3835 02:53:43,268 --> 02:53:45,703 PRIORITIZED WITH POLICE TRAINING 3836 02:53:45,703 --> 02:53:47,806 CAUSING MORE HARM THAN GOOD. 3837 02:53:47,806 --> 02:53:49,240 >> Josh: CAN I ASK YOU TO WRAP 3838 02:53:49,240 --> 02:53:50,708 UP, PLEASE. 3839 02:53:50,708 --> 02:53:52,310 >> IT'S ESSENTIAL TO RECOGNIZE 3840 02:53:52,310 --> 02:53:53,945 THE HISTORY OF THE SYSTEMS AND 3841 02:53:53,945 --> 02:53:55,914 INSTEAD INVEST RESOURCES IN THE 3842 02:53:55,914 --> 02:53:56,948 COMMUNITIES AND ORGANIZATIONS 3843 02:53:56,948 --> 02:53:59,451 LED BY DISABLED PEOPLE OF COLOR. 3844 02:53:59,451 --> 02:54:02,353 WE RECOMMEND LEADING OUR WHOLE 3845 02:54:02,353 --> 02:54:04,989 LETTER. 3846 02:54:04,989 --> 02:54:08,026 THANK YOU. 3847 02:54:08,026 --> 02:54:09,327 >> Josh: THANK YOU VERY MUCH MS. 3848 02:54:09,327 --> 02:54:11,096 JENSEN AND ALL THREE OF OUR ORAL 3849 02:54:11,096 --> 02:54:11,396 COMMENTERS. 3850 02:54:11,396 --> 02:54:14,065 NOW OVER TO SUSAN FOR A 3851 02:54:14,065 --> 02:54:14,699 PRESENTATION OF THE WRITTEN 3852 02:54:14,699 --> 02:54:17,035 COMMENTS WHICH YOU EACH HAVE 3853 02:54:17,035 --> 02:54:21,072 RECEIVED IN THE FILE SENT IN 3854 02:54:21,072 --> 02:54:28,980 ADVANCE AND TO YOU. 3855 02:54:28,980 --> 02:54:30,849 >> Susan: I'LL HAVE DR. CELESTIN 3856 02:54:30,849 --> 02:54:32,350 SHARE THE WRITTEN COMMENTS WITH 3857 02:54:32,350 --> 02:54:32,717 YOU. 3858 02:54:32,717 --> 02:54:37,288 >> WE RECEIVED 13 WRITTEN PUBLIC 3859 02:54:37,288 --> 02:54:38,590 COMMENTS FOR THIS MEETING ON THE 3860 02:54:38,590 --> 02:54:39,324 FOLLOWING TOPICS. 3861 02:54:39,324 --> 02:54:42,660 THREE ON JUSTICE AND LAW 3862 02:54:42,660 --> 02:54:44,329 ENFORCEMENT, TWO ON RESEARCH 3863 02:54:44,329 --> 02:54:47,298 SERVICES AND SUPPORTS FOR ADULTS 3864 02:54:47,298 --> 02:54:49,701 WITH AUTISM, TWO COMMENTS ON 3865 02:54:49,701 --> 02:54:51,236 RESEARCH AND SERVICE NEEDS, 3866 02:54:51,236 --> 02:54:53,571 RESOURCES AND POLICY 3867 02:54:53,571 --> 02:54:53,905 IMPLICATIONS. 3868 02:54:53,905 --> 02:54:55,707 TWO COMMENTS ON ADDRESSING THE 3869 02:54:55,707 --> 02:55:00,745 NEEDS OF AUTISTIC INDIVIDUALS 3870 02:55:00,745 --> 02:55:03,348 WITH HIGH SUPPORT NEEDS ONE 3871 02:55:03,348 --> 02:55:04,949 COMMENT ON MENTAL HEALTH 3872 02:55:04,949 --> 02:55:06,351 RESEARCH SERVICES AND TREATMENT. 3873 02:55:06,351 --> 02:55:08,987 ONE COMMENT ON CONCERNS ABOUT 3874 02:55:08,987 --> 02:55:14,559 MEDICAL PRACTICES, ONE COMMENT 3875 02:55:14,559 --> 02:55:16,194 ABOUT INCREASING AUTISM 3876 02:55:16,194 --> 02:55:17,262 ACCEPTANCE AND REDUCING STIGMA 3877 02:55:17,262 --> 02:55:19,964 AND ONE COMMENT ON THE NEEDS OF 3878 02:55:19,964 --> 02:55:20,632 THE DIRECT SUPPORT PROFESSIONAL 3879 02:55:20,632 --> 02:55:21,499 WORKFORCE AGAIN ALL THE COMMENTS 3880 02:55:21,499 --> 02:55:22,066 CAN BE FOUND ON THE WEBSITE. 3881 02:55:22,066 --> 02:55:32,243 THANK YOU. 3882 02:55:34,045 --> 02:55:35,446 >> Josh: WE'RE NOW GOING TO OPEN 3883 02:55:35,446 --> 02:55:38,316 IT UP TO THE COMMITTEE TO 3884 02:55:38,316 --> 02:55:40,185 DISCUSS THE COMMENTS MADE. 3885 02:55:40,185 --> 02:55:45,757 MAY DISCUSS ANY OF THE WRITTEN 3886 02:55:45,757 --> 02:55:52,297 OR ORAL COMMENTS. 3887 02:55:52,297 --> 02:55:55,333 GO AHEAD, YETTA. 3888 02:55:55,333 --> 02:55:57,001 >> I'D LIKE TO THANK EVERYONE 3889 02:55:57,001 --> 02:55:58,403 WHO HAS PROVIDED ORAL AND 3890 02:55:58,403 --> 02:55:59,170 WRITTEN COMMENTS. 3891 02:55:59,170 --> 02:56:04,876 I WANT TO HIGHLIGHT FOR THE 3892 02:56:04,876 --> 02:56:07,512 GROUP ROSE BAUMEN'S COMMENT 3893 02:56:07,512 --> 02:56:12,016 WHERE THEY EXPRESS FAMILIES 3894 02:56:12,016 --> 02:56:14,686 NEEDED TO CALL 9-1-1 MORE THAN 3895 02:56:14,686 --> 02:56:16,154 ONCE DURING AN AGGRESSIVE 3896 02:56:16,154 --> 02:56:18,189 EPISODE AND OFTEN LAW 3897 02:56:18,189 --> 02:56:21,559 ENFORCEMENT IS UNEQUIPPED 3898 02:56:21,559 --> 02:56:23,328 CAUSING THEM TO BE DYSREGULATED. 3899 02:56:23,328 --> 02:56:24,662 I WANT TO HIGHLIGHT THAT COMMENT 3900 02:56:24,662 --> 02:56:26,631 BECAUSE IT'S BEING TALKED ABOUT 3901 02:56:26,631 --> 02:56:28,466 IN THE COMMUNITY, IN MY LOCAL 3902 02:56:28,466 --> 02:56:31,002 COMMUNITY AND THE COMMUNITY AT 3903 02:56:31,002 --> 02:56:31,269 LARGE. 3904 02:56:31,269 --> 02:56:33,004 SO I REALLY WANT TO SAY THAT 3905 02:56:33,004 --> 02:56:35,306 IT'S GOING TO TAKE EVERYONE 3906 02:56:35,306 --> 02:56:37,141 WORKING TOGETHER AND REALLY 3907 02:56:37,141 --> 02:56:39,677 EXCITE ABOUT THE PRESENTATION 3908 02:56:39,677 --> 02:56:40,545 LATER. 3909 02:56:40,545 --> 02:56:44,983 LAURIE REYES I KNOW ABOUT YOUR 3910 02:56:44,983 --> 02:56:47,318 WORK IN MONTGOMERY COUNTY BUT 3911 02:56:47,318 --> 02:56:49,854 IT'S GOING IT TAKE ALL OF US TO 3912 02:56:49,854 --> 02:56:50,688 WORK TOGETHER TO GET THIS 3913 02:56:50,688 --> 02:56:53,157 TOGETHER, RIGHT. 3914 02:56:53,157 --> 02:56:56,995 WE CAN'T HAVE FOLKS DYING 3915 02:56:56,995 --> 02:56:58,930 BECAUSE THEY HAVE BEHAVIORS. 3916 02:56:58,930 --> 02:57:09,173 IT SICKENS ME. 3917 02:57:11,943 --> 02:57:13,611 I'M EXCITED WE'RE HAVING THE 3918 02:57:13,611 --> 02:57:14,279 CONFERENCE TODAY. 3919 02:57:14,279 --> 02:57:18,449 >> Josh: THANK YOU, YETTA. 3920 02:57:18,449 --> 02:57:24,589 >> I WANT TO BRING UP NICOLE'S 3921 02:57:24,589 --> 02:57:30,028 COMMENTS WE NEED ANURSING -- 3922 02:57:30,028 --> 02:57:30,962 NURSING LEVEL OF CARE. 3923 02:57:30,962 --> 02:57:33,998 >> Josh: CAN YOU SPELL OUT THE 3924 02:57:33,998 --> 02:57:34,799 ACRONYM. 3925 02:57:34,799 --> 02:57:36,534 >> HOME AND COMMUNITY BASED 3926 02:57:36,534 --> 02:57:41,105 SERVICES. 3927 02:57:41,105 --> 02:57:43,474 AGAIN, AUTISM IS A DYNAMIC 3928 02:57:43,474 --> 02:57:45,076 CONDITION AND THE NEEDS FOR 3929 02:57:45,076 --> 02:57:54,385 SUPPORT SERVICES EBB AND FLOW I 3930 02:57:54,385 --> 02:57:56,187 HAVE A COLLEAGUE WHO RECENTLY 3931 02:57:56,187 --> 02:57:57,889 RELOCATED FOR THE DREAM JOB OF A 3932 02:57:57,889 --> 02:58:01,993 LIFE TIME AND PACKING TO A NEW 3933 02:58:01,993 --> 02:58:03,695 STATE IS ON THE EDGE OF COSTING 3934 02:58:03,695 --> 02:58:04,529 HER HER JOB. 3935 02:58:04,529 --> 02:58:12,003 WE NEED TO SWITCH OUR IDEAS 3936 02:58:12,003 --> 02:58:14,472 ABOUT NURSING LEVEL OF CARE TO 3937 02:58:14,472 --> 02:58:15,873 EPISODIC NEEDS AND FROM A POLICY 3938 02:58:15,873 --> 02:58:20,978 STANDPOINT WE'RE GOING TO BE 3939 02:58:20,978 --> 02:58:25,316 GETTING MANY PEOPLE OFF 3940 02:58:25,316 --> 02:58:26,584 UNEMPLOYMENT AND SOCIAL SERVICES 3941 02:58:26,584 --> 02:58:30,988 IF WE CAN SWITCH TO EPISODIC 3942 02:58:30,988 --> 02:58:31,856 SUPPORT. 3943 02:58:31,856 --> 02:58:34,926 I'M GOING RELOCATE AND IT'S 3944 02:58:34,926 --> 02:58:38,129 GOING TO PUT ME IN DEBT AND I'M 3945 02:58:38,129 --> 02:58:43,000 LIVING ON $900 A MONTH WE CAN'T 3946 02:58:43,000 --> 02:58:44,836 KEEP PEOPLE OUT OF TOWNS OF 3947 02:58:44,836 --> 02:58:45,470 OPPORTUNITIES BECAUSE WE ASSUME 3948 02:58:45,470 --> 02:58:55,813 THEIR NEEDS ARE CONSTANT. 3949 02:58:55,813 --> 02:58:57,949 >> Josh: OTHER COMMENTS? 3950 02:58:57,949 --> 02:58:58,649 ALICIA. 3951 02:58:58,649 --> 02:58:59,951 >> I'LL LET SOMEBODY ON ZOOM 3952 02:58:59,951 --> 02:59:00,651 JUMP IN FIRST. 3953 02:59:00,651 --> 02:59:09,894 >> Josh: SAM, YOU'RE NEXT. 3954 02:59:09,894 --> 02:59:13,464 >> I WANTED TO TALK ABOUT THE 3955 02:59:13,464 --> 02:59:13,931 COMMENTER DISCUSSING 3956 02:59:13,931 --> 02:59:14,799 COMMUNICATION SUPPORTS BECAUSE 3957 02:59:14,799 --> 02:59:19,504 THIS IS SOMETHING THAT I HAVE 3958 02:59:19,504 --> 02:59:23,474 SEEN IN PRACTICE AND IT REALLY 3959 02:59:23,474 --> 02:59:27,378 CAN CAUSE ISSUES ON AN 3960 02:59:27,378 --> 02:59:37,889 INDIVIDUAL LEVEL SO THERE ARE 3961 02:59:39,223 --> 02:59:40,925 RESEARCHERS WITHOUT INTERACTING 3962 02:59:40,925 --> 02:59:47,498 WITH PEOPLE ENGAGE IN PUBLIC 3963 02:59:47,498 --> 02:59:50,635 DENUNCIATIONS AND HARASSMENT OF 3964 02:59:50,635 --> 02:59:58,042 PEOPLE AND I THINK IT'S ANYONE 3965 02:59:58,042 --> 02:59:59,243 APPROPRIATE AND BLUR THE 3966 02:59:59,243 --> 03:00:00,645 DISTINCTION BETWEEN WHAT I WOULD 3967 03:00:00,645 --> 03:00:06,050 SAY IS THE RESEARCH FOCUS, WHICH 3968 03:00:06,050 --> 03:00:16,594 IS REPLICABILITY ENSURING WE SEE 3969 03:00:16,994 --> 03:00:23,167 THINGS UP STALE AND GETTING AND 3970 03:00:23,167 --> 03:00:24,669 UNDERSTANDING THINGS AT THE 3971 03:00:24,669 --> 03:00:25,970 POPULATION LEVEL VERSUS 3972 03:00:25,970 --> 03:00:30,141 INDIVIDUALS WHO I THINK ARE MORE 3973 03:00:30,141 --> 03:00:35,947 WHEN YOU WANT TO LOOK AT WHETHER 3974 03:00:35,947 --> 03:00:46,491 AN INDIVIDUAL HAS VALID FORM OF 3975 03:00:50,761 --> 03:00:51,462 COMMUNICATING ARE DIFFERENT AND 3976 03:00:51,462 --> 03:00:52,129 IN THE COMMUNICATION SPHERE 3977 03:00:52,129 --> 03:00:54,065 GETTING A COALITION OF 3978 03:00:54,065 --> 03:00:59,003 RESEARCHERS AND STAKEHOLDERS 3979 03:00:59,003 --> 03:01:04,141 TOGETHER TO DETERMINE AND THE 3980 03:01:04,141 --> 03:01:06,244 INDIVIDUAL IS COMMUNICATING IN A 3981 03:01:06,244 --> 03:01:12,984 WAY THAT IS AU BE THE TICK. 3982 03:01:12,984 --> 03:01:15,720 -- AUTHENTIC I'VE SEEN PEOPLE 3983 03:01:15,720 --> 03:01:17,822 COMMUNICATING THAT IS 3984 03:01:17,822 --> 03:01:19,423 IDIOSYNCRATIC TO THEM AND IF WE 3985 03:01:19,423 --> 03:01:22,393 HAD A NORM WHERE WE'RE ONLY 3986 03:01:22,393 --> 03:01:23,394 RECOGNIZING COMMUNICATION THAT 3987 03:01:23,394 --> 03:01:25,229 LOOKS EXACTLY LIKE A FORM OF 3988 03:01:25,229 --> 03:01:27,198 COMMUNICATION THAT'S IN A 3989 03:01:27,198 --> 03:01:28,566 PEER-REVIEWED STUDY, WE'RE GOING 3990 03:01:28,566 --> 03:01:31,402 TO HAVE NEGATIVE OUTCOMES AND 3991 03:01:31,402 --> 03:01:33,004 GOING TO BE IGNORING 3992 03:01:33,004 --> 03:01:33,671 COMMUNICATION FROM INDIVIDUALS 3993 03:01:33,671 --> 03:01:39,243 WHO ARE COMMUNICATING. 3994 03:01:39,243 --> 03:01:48,986 GETTING A MORE NUANCE D LOOK INO 3995 03:01:48,986 --> 03:01:50,054 INDIVIDUAL COMMUNICATION AND 3996 03:01:50,054 --> 03:01:54,325 DEVELOPING GUIDELINES FOR 3997 03:01:54,325 --> 03:01:56,260 DETERMINING WHETHER AN 3998 03:01:56,260 --> 03:01:57,895 INDIVIDUAL IS SHOWING AUTHENTIC 3999 03:01:57,895 --> 03:02:03,734 COMMUNICATION WOULD BE A REALLY 4000 03:02:03,734 --> 03:02:04,735 IMPORTANT TOPIC I THINK. 4001 03:02:04,735 --> 03:02:07,071 >> Josh: I LIKE THE WAY YOU PUT 4002 03:02:07,071 --> 03:02:07,271 THAT. 4003 03:02:07,271 --> 03:02:08,339 THANK YOU, SAM. 4004 03:02:08,339 --> 03:02:10,441 THERE'S A CHALLENGE HERE AND 4005 03:02:10,441 --> 03:02:12,343 IT'S A CHALLENGE WHICH AFFECTS 4006 03:02:12,343 --> 03:02:17,415 EVEN THE WORK THAT WE DO AT THE 4007 03:02:17,415 --> 03:02:17,615 IACC. 4008 03:02:17,615 --> 03:02:19,650 THE CHALLENGES WE WANT TO 4009 03:02:19,650 --> 03:02:21,519 ADVOCATE FOR INVESTMENTS IN 4010 03:02:21,519 --> 03:02:24,188 SERVICES FOR INDIVIDUALS WITH 4011 03:02:24,188 --> 03:02:26,257 AUTISM THAT WORK FOR THEM, FOR 4012 03:02:26,257 --> 03:02:27,758 THEIR FAMILIES, FOR THEIR 4013 03:02:27,758 --> 03:02:28,159 COMMUNITIES. 4014 03:02:28,159 --> 03:02:32,029 YET, WE RECOGNIZE OF COURSE, 4015 03:02:32,029 --> 03:02:34,532 THERE'S NOT UNLIMITED RESOURCES 4016 03:02:34,532 --> 03:02:35,700 TO PROVIDE THOSE SERVICES. 4017 03:02:35,700 --> 03:02:38,502 IN FACT, WE NEED LOTS MORE 4018 03:02:38,502 --> 03:02:40,404 RESOURCES EVEN FOR THE SERVICES 4019 03:02:40,404 --> 03:02:42,039 THAT WE KNOW ABSOLUTELY WORK FOR 4020 03:02:42,039 --> 03:02:43,541 EVERYBODY OR AT LEAST A LOT OF 4021 03:02:43,541 --> 03:02:48,045 PEOPLE. 4022 03:02:48,045 --> 03:02:52,984 SO THERE IS, IF YOU WILL, A DE 4023 03:02:52,984 --> 03:02:54,018 FACTO COMPETITION FOR SCARCE 4024 03:02:54,018 --> 03:02:55,419 RESOURCES IN THIS AREA. 4025 03:02:55,419 --> 03:02:59,790 I THINK WHAT YOU THEREFORE RELY 4026 03:02:59,790 --> 03:03:00,992 ON IS SOME EVIDENCE THAT THINKS 4027 03:03:00,992 --> 03:03:02,526 IN ORDER FOR THE PUBLIC TO 4028 03:03:02,526 --> 03:03:03,561 INVEST IN THOSE SERVICES. 4029 03:03:03,561 --> 03:03:08,566 AT THE SAME TIME, SAM, YOU'RE 4030 03:03:08,566 --> 03:03:10,201 100% CORRECT IN THAT THIS IS 4031 03:03:10,201 --> 03:03:11,902 FACED ACROSS MEDICINE FOR 4032 03:03:11,902 --> 03:03:13,137 INDIVIDUALIZED PRECISION 4033 03:03:13,137 --> 03:03:13,537 MEDICINES. 4034 03:03:13,537 --> 03:03:14,739 WE NEED WAYS TO UNDERSTAND 4035 03:03:14,739 --> 03:03:16,474 WHETHER THINGS THAT WORK FOR A 4036 03:03:16,474 --> 03:03:18,009 SMALL GROUP OF INDIVIDUALS CAN 4037 03:03:18,009 --> 03:03:19,443 ACTUALLY WORK FOR THAT SMALL 4038 03:03:19,443 --> 03:03:22,013 GROUP OF INDIVIDUALS AND CAN 4039 03:03:22,013 --> 03:03:23,280 EVEN MORE IMPORTANTLY AS YOU 4040 03:03:23,280 --> 03:03:29,020 POINT OUT BE TAILORED TO 4041 03:03:29,020 --> 03:03:33,290 SPECIFIC THINGS FOR SPECIFIC 4042 03:03:33,290 --> 03:03:36,093 INDIVIDUAL AND THINGS TO COME 4043 03:03:36,093 --> 03:03:38,863 BACK TO AS AN IACC AND RECOGNIZE 4044 03:03:38,863 --> 03:03:42,366 INSTITUTIONS LIKE NIDCC THE 4045 03:03:42,366 --> 03:03:44,535 NATIONAL INSTITUTE OF DEFECTIVE 4046 03:03:44,535 --> 03:03:46,370 AND COMMUNICATION DISORDERS AND 4047 03:03:46,370 --> 03:03:48,739 FUNDS RESEARCH IN THAT AREA, FOR 4048 03:03:48,739 --> 03:03:52,843 THEM TO HOLD MEETINGS LIKE THE 4049 03:03:52,843 --> 03:03:54,912 ONE THAT WAS LAUDED IS A STEP IN 4050 03:03:54,912 --> 03:03:55,780 THE RIGHT DIRECTION. 4051 03:03:55,780 --> 03:04:04,221 I APPRECIATE THAT COMMENT, SAM. 4052 03:04:04,221 --> 03:04:09,160 >> SO IS MR. TUCCI STILL ON THE 4053 03:04:09,160 --> 03:04:09,360 LINE? 4054 03:04:09,360 --> 03:04:12,763 HIS COMMENT AND THEN ALSO HIS 4055 03:04:12,763 --> 03:04:14,565 STATEMENT REFERRED TO SOMETHING 4056 03:04:14,565 --> 03:04:15,399 CALLED SCIENTIFIC ADVOCACY. 4057 03:04:15,399 --> 03:04:18,803 SO I WANTED TO GET MAYBE A CLEAR 4058 03:04:18,803 --> 03:04:21,005 SENSE OF WHAT HE WAS TALKING 4059 03:04:21,005 --> 03:04:24,975 ABOUT IN THE SPIRIT OF OPEN 4060 03:04:24,975 --> 03:04:28,646 COMMUNICATION I WANTED TO GET 4061 03:04:28,646 --> 03:04:31,749 MORE OF A CLEAR DEFINITION. 4062 03:04:31,749 --> 03:04:34,652 WHAT'S HE MEAN BY SCIENTIFIC 4063 03:04:34,652 --> 03:04:35,720 ADVOCACY AND THERE SEEMS TO BE 4064 03:04:35,720 --> 03:04:36,120 SOMETHING MISSING. 4065 03:04:36,120 --> 03:04:38,089 >> Josh: MR. TUCCI CAN YOU 4066 03:04:38,089 --> 03:04:39,657 UNMUTE AND RESPOND? 4067 03:04:39,657 --> 03:04:43,327 HE'S NOT ON ANY MORE. 4068 03:04:43,327 --> 03:04:47,398 LET ME MAKE AN ATTEMPT UNLESS 4069 03:04:47,398 --> 03:04:48,399 SOMETHING AROUND THE TABLE WOULD 4070 03:04:48,399 --> 03:04:51,736 LIKE TO SUGGEST WHAT HE MIGHT 4071 03:04:51,736 --> 03:04:52,103 HAVE MEANT. 4072 03:04:52,103 --> 03:04:55,573 >> I'M PRETTY SURE I KNOW WHAT 4073 03:04:55,573 --> 03:04:56,340 HE'S TALKING ABOUT. 4074 03:04:56,340 --> 03:05:01,145 >> Josh: GO AHEAD, SAM. 4075 03:05:01,145 --> 03:05:06,484 >> IT'S A SPECIFIC -- I DON'T 4076 03:05:06,484 --> 03:05:12,623 WANT TO CALL ANYONE OUT BUT 4077 03:05:12,623 --> 03:05:19,530 THERE ARE SPECIFIC PEOPLE WHO DO 4078 03:05:19,530 --> 03:05:24,969 RESEARCH IN THIS FIELD WHO OF 4079 03:05:24,969 --> 03:05:29,140 THEN GO INTO POLICY ADVOCACY. 4080 03:05:29,140 --> 03:05:32,977 AND I APPRECIATED THE WAY 4081 03:05:32,977 --> 03:05:34,712 DR. GORDON WAS FREEZING THE 4082 03:05:34,712 --> 03:05:35,679 DISTINCTION BETWEEN DECIDING 4083 03:05:35,679 --> 03:05:40,084 WHAT WE WANT TO INVEST IN WITH 4084 03:05:40,084 --> 03:05:42,153 LIMITED DOLLARS FOR SUPPORT 4085 03:05:42,153 --> 03:05:44,889 VERSUS MAKING LET'S SAY CLINICAL 4086 03:05:44,889 --> 03:05:47,992 OR RIGHTS DECISIONS ABOUT AN 4087 03:05:47,992 --> 03:05:48,993 INDIVIDUAL PERSON WHO SOUNDS 4088 03:05:48,993 --> 03:05:50,294 SOMETHING THAT WORKS FOR THEM 4089 03:05:50,294 --> 03:05:56,333 AND I HAVE DEFINITELY SEEN 4090 03:05:56,333 --> 03:06:01,071 INDIVIDUAL RESEARCHERS WHO 4091 03:06:01,071 --> 03:06:03,574 BEYOND ADVOCACY AND INTO 4092 03:06:03,574 --> 03:06:07,678 SPECIFICALLY IF A PERSON WAS 4093 03:06:07,678 --> 03:06:10,247 TRYING TO GAIN REASONABLE 4094 03:06:10,247 --> 03:06:11,615 ACCOMMODATION AT SCHOOL OR AT 4095 03:06:11,615 --> 03:06:22,126 WORK OR EVEN IN A COURT CASE. 4096 03:06:25,362 --> 03:06:27,898 THEY WILL WILL INSERT THEMSELVES 4097 03:06:27,898 --> 03:06:30,501 AND ADVOCATE AGAINST THAT FORM 4098 03:06:30,501 --> 03:06:31,068 OF COMMUNICATION IN 4099 03:06:31,068 --> 03:06:32,303 UNDERSTANDING WHETHER THE FORM 4100 03:06:32,303 --> 03:06:33,003 OF COMMUNICATION IS RESEARCH 4101 03:06:33,003 --> 03:06:40,077 BASED. 4102 03:06:40,077 --> 03:06:41,879 I DO HAVE CONCERNS ABOUT THAT. 4103 03:06:41,879 --> 03:06:44,748 >> I DON'T WANT TO BELABOR THE 4104 03:06:44,748 --> 03:06:45,983 CONVERSATION BUT I BELIEVE THE 4105 03:06:45,983 --> 03:06:47,852 TERM SCIENTIFIC ADVOCACY IS 4106 03:06:47,852 --> 03:06:48,285 INAPPROPRIATE. 4107 03:06:48,285 --> 03:06:53,457 WE HAVE SCIENTIFIC EVIDENCE AND 4108 03:06:53,457 --> 03:06:54,792 THEN EVIDENCE USED FOR ADVOCACY 4109 03:06:54,792 --> 03:06:58,028 BUT I'M A LITTLE CONFUSED ABOUT 4110 03:06:58,028 --> 03:06:59,530 THE TERM SCIENTIFIC ADVOCACY SO 4111 03:06:59,530 --> 03:07:02,466 I JUST WANT TO PUT THAT ON THE 4112 03:07:02,466 --> 03:07:04,435 RECORD. 4113 03:07:04,435 --> 03:07:07,271 >> Josh: THANK YOU, ALICIA. 4114 03:07:07,271 --> 03:07:09,173 YOU HAVE HAND UP. 4115 03:07:09,173 --> 03:07:12,977 MR. TUCCI -- 4116 03:07:12,977 --> 03:07:13,611 >> SURE. 4117 03:07:13,611 --> 03:07:16,146 IT'D BE MY PLEASURE. 4118 03:07:16,146 --> 03:07:17,648 BASICALLY THE TERM SCIENTIFIC 4119 03:07:17,648 --> 03:07:20,985 ADVOCACY I'M REFERRING TO IS A 4120 03:07:20,985 --> 03:07:25,356 CONCEPT THAT INDIVIDUALS WHO ARE 4121 03:07:25,356 --> 03:07:26,857 TAKING THE POSITION THAT THEY 4122 03:07:26,857 --> 03:07:30,527 ARE ADHERING TO THE SCIENTIFIC 4123 03:07:30,527 --> 03:07:30,728 MODEL. 4124 03:07:30,728 --> 03:07:31,428 THE EVIDENCE-BASED PRACTICE 4125 03:07:31,428 --> 03:07:33,530 MODEL AND THEY'RE GOING TO SAY 4126 03:07:33,530 --> 03:07:36,500 WE'RE PROMOTING WHEN 4127 03:07:36,500 --> 03:07:39,904 INTERVENTIONS THAT MEET THE BEST 4128 03:07:39,904 --> 03:07:40,738 EVIDENCE RULE. 4129 03:07:40,738 --> 03:07:45,609 AND INDIVIDUALS THAT ARE GOING 4130 03:07:45,609 --> 03:07:51,015 TO ADVANCE THAT CLAIM WILL 4131 03:07:51,015 --> 03:07:52,750 ULTIMATELY GO BEYOND THE SCOPE 4132 03:07:52,750 --> 03:07:55,419 OF JUST BEING LIMITED TO HAVING 4133 03:07:55,419 --> 03:08:01,859 A TECHNIQUE WE BELIEVE DOESN'T 4134 03:08:01,859 --> 03:08:04,028 MEET AND AS A RESULT OF THAT 4135 03:08:04,028 --> 03:08:05,095 WE'RE GOING ONE STEP FURTHER 4136 03:08:05,095 --> 03:08:07,831 SAYING IF YOU DON'T MEET WHAT WE 4137 03:08:07,831 --> 03:08:09,500 CONSIDER TO BE BEST EVIDENCE, 4138 03:08:09,500 --> 03:08:13,504 YOU DON'T QUALIFY FOR CERTAIN 4139 03:08:13,504 --> 03:08:13,971 COMMUNICATION RIGHTS. 4140 03:08:13,971 --> 03:08:21,578 SO WHAT I'M SUGGESTING IS THAT 4141 03:08:21,578 --> 03:08:23,547 THESE INDIVIDUALS AND THEY'RE 4142 03:08:23,547 --> 03:08:25,883 BASICALLY FAILING TO SEE THE 4143 03:08:25,883 --> 03:08:27,952 DISTINCTION BETWEEN WHAT DOES IT 4144 03:08:27,952 --> 03:08:30,421 MEAN IF OUR ARGUMENT IS THERE'S 4145 03:08:30,421 --> 03:08:33,357 NO SCIENTIFIC SUPPORT FOR THIS 4146 03:08:33,357 --> 03:08:33,924 INTERVENTION. 4147 03:08:33,924 --> 03:08:36,160 WHEREBY THE INDIVIDUALS USING 4148 03:08:36,160 --> 03:08:37,261 FOR EXAMPLE IN THIS CASE A 4149 03:08:37,261 --> 03:08:38,395 METHOD OF COMMUNICATION THAT HAS 4150 03:08:38,395 --> 03:08:42,333 WORKED FOR THEM. 4151 03:08:42,333 --> 03:08:46,070 AND THEY HAVE DISAGREEMENTS 4152 03:08:46,070 --> 03:08:46,437 AMONGST EXPERTS. 4153 03:08:46,437 --> 03:08:48,339 SOME EXPERTS SAY THERE IS 4154 03:08:48,339 --> 03:08:49,640 SCIENCE SUPPORTING THE 4155 03:08:49,640 --> 03:08:54,578 INTERVENTION, OTHER EXPERTS SAY 4156 03:08:54,578 --> 03:09:00,985 THERE AREN'T -- 4157 03:09:00,985 --> 03:09:02,920 >> I APPRECIATE IT. 4158 03:09:02,920 --> 03:09:13,430 >> JOSH: WE HAVE ONE COMMENT. 4159 03:09:26,710 --> 03:09:31,949 NICK NICOLE'S COMMENTS ON THE 4160 03:09:31,949 --> 03:09:33,917 NEED FOR PROFESSIONAL WORKFORCE 4161 03:09:33,917 --> 03:09:36,987 AND HIGHLIGHTED A CANADA TO 4162 03:09:36,987 --> 03:09:40,991 EMPLOY NEURODIVERGENT PEOPLE IN 4163 03:09:40,991 --> 03:09:42,359 MEDICAL SIMULATION TO HELP 4164 03:09:42,359 --> 03:09:43,560 EDUCATE MEDICAL STUDENTS. 4165 03:09:43,560 --> 03:09:45,963 I WONDER IF NIH AND SISTER 4166 03:09:45,963 --> 03:09:47,531 AGENCIES COULD HELP WITH 4167 03:09:47,531 --> 03:09:48,999 SUPPORTING PRACTICES LIKE THIS 4168 03:09:48,999 --> 03:09:50,567 FOR MEDICAL SCHOOLS HERE IN THE 4169 03:09:50,567 --> 03:09:53,003 U.S. GIVEN A LOT OF MEDICAL 4170 03:09:53,003 --> 03:09:55,939 STUDENTS DON'T RECEIVE A LOT OF 4171 03:09:55,939 --> 03:09:57,541 EDUCATION ABOUT NEURODIVERSE 4172 03:09:57,541 --> 03:09:59,343 PEOPLE INCLUDING AUTISTIC PEOPLE 4173 03:09:59,343 --> 03:10:01,578 AND HAS COME UP AT PRIOR IACC 4174 03:10:01,578 --> 03:10:03,080 MEETINGS AND GLAD IT WAS 4175 03:10:03,080 --> 03:10:03,881 HIGHLIGHTED IN THE COMMENT. 4176 03:10:03,881 --> 03:10:05,182 >> Josh: THANK YOU, SCOTT. 4177 03:10:05,182 --> 03:10:07,785 WE'RE GOING TO NOW MOVE INTO THE 4178 03:10:07,785 --> 03:10:11,488 MAIN EVENT FOR THE AFTERNOON 4179 03:10:11,488 --> 03:10:15,559 WHICH IS THE JUSTICE AND LAW 4180 03:10:15,559 --> 03:10:26,070 ENFORCEMENT PRESENTATIONS AND 4181 03:10:26,370 --> 03:10:29,773 PANEL DISCUSSION. 4182 03:10:29,773 --> 03:10:34,211 THIS HAS COME UP ENUMERABLE 4183 03:10:34,211 --> 03:10:42,853 TIMES AND ALL OF US IN THE 4184 03:10:42,853 --> 03:10:44,054 AUTISM COMMUNITY AND WE'VE 4185 03:10:44,054 --> 03:10:45,522 FOCUSSED IN WANDERING BRINGING 4186 03:10:45,522 --> 03:10:51,495 THE ROLE OF LAW ENFORCEMENT AND 4187 03:10:51,495 --> 03:10:52,029 ENSURING THE SAFETY OF 4188 03:10:52,029 --> 03:10:56,033 INDIVIDU 4189 03:10:56,033 --> 03:10:58,102 INDIVIDUALS IN THOSE SITUATIONS 4190 03:10:58,102 --> 03:10:59,870 AND WE'LL HEAR ABOUT A BROAD 4191 03:10:59,870 --> 03:11:00,971 ARRANGE OF JUSTICE ISSUES 4192 03:11:00,971 --> 03:11:03,240 INCLUDING THE INTERACTIONS OF 4193 03:11:03,240 --> 03:11:04,975 AUTISTIC INDIVIDUALS WITH THE 4194 03:11:04,975 --> 03:11:06,944 LAW ENFORCEMENT AND JUDICIAL 4195 03:11:06,944 --> 03:11:08,378 SYSTEM AND PROGRAMS EMERGING IN 4196 03:11:08,378 --> 03:11:10,414 THIS SPACE TO DEVELOP BEST 4197 03:11:10,414 --> 03:11:11,148 PRACTICES THAT WILL INCREASE 4198 03:11:11,148 --> 03:11:12,983 SAFETY AND PROTECT THE RIGHTS OF 4199 03:11:12,983 --> 03:11:17,187 PEOPLE WITH AUTISM AND OTHER 4200 03:11:17,187 --> 03:11:18,555 INTELLECTUAL AND DEVELOPMENT 4201 03:11:18,555 --> 03:11:18,956 DISABILITIES. 4202 03:11:18,956 --> 03:11:21,058 TODAY'S PRESENTATIONS WILL 4203 03:11:21,058 --> 03:11:22,459 HIGHLIGHT THE IMPORTANT WORK 4204 03:11:22,459 --> 03:11:24,094 GOVERNMENTS AND OTHER 4205 03:11:24,094 --> 03:11:24,895 ORGANIZATIONS ARE DOING TO 4206 03:11:24,895 --> 03:11:27,631 ADDRESS SOME OF THESE ISSUES AND 4207 03:11:27,631 --> 03:11:29,032 RAISE I'M SURE MANY INTERESTING 4208 03:11:29,032 --> 03:11:35,405 AREAS FOR DISCUSSION. 4209 03:11:35,405 --> 03:11:36,974 WE HAVE TWO SEPARATE PARTS TO 4210 03:11:36,974 --> 03:11:38,909 THE AFTERNOON'S EVENTS. 4211 03:11:38,909 --> 03:11:40,677 FIRST A SERIES OF PRESENTATIONS 4212 03:11:40,677 --> 03:11:43,447 FROM THE CURRENT PROGRAMS TO 4213 03:11:43,447 --> 03:11:46,483 ADDRESS JUSTICE AND LAW 4214 03:11:46,483 --> 03:11:47,384 ENFORCEMENT ISSUES FOR 4215 03:11:47,384 --> 03:11:48,986 INDIVIDUALS ON THE SPECTRUM AND 4216 03:11:48,986 --> 03:11:51,355 THEN HEAR A PANEL THAT INCLUDES 4217 03:11:51,355 --> 03:11:52,222 SEVERAL PEOPLE SHARING THEIR 4218 03:11:52,222 --> 03:11:53,123 LIVE AND PROFESSIONAL 4219 03:11:53,123 --> 03:12:03,567 EXPERIENCES IN THIS AREA. 4220 03:12:06,970 --> 03:12:09,106 MR. GORDAN WILL PRESENT A BRIEF 4221 03:12:09,106 --> 03:12:11,375 OVERVIEW AND DISCUSS HIS WORK IN 4222 03:12:11,375 --> 03:12:16,146 THE DEPARTMENT OF JUS IT'S AS 4223 03:12:16,146 --> 03:12:17,214 ASSISTANT UNIT ATTORNEY AND 4224 03:12:17,214 --> 03:12:18,382 CIVIL RIGHTS ENFORCEMENT 4225 03:12:18,382 --> 03:12:19,983 COORDINATOR FOR THE 4226 03:12:19,983 --> 03:12:22,352 U.S. DEPARTMENT OF JUSTICE. 4227 03:12:22,352 --> 03:12:24,988 >> I'LL START OFF HERE WITH A 4228 03:12:24,988 --> 03:12:25,489 LITTLE INTRODUCTION. 4229 03:12:25,489 --> 03:12:36,033 ARE FOLKS ABLE TO HEAR ME OKAY? 4230 03:12:37,201 --> 03:12:42,306 >> IS THIS BETTER? 4231 03:12:42,306 --> 03:12:43,240 PERFECT. 4232 03:12:43,240 --> 03:12:46,610 AS WE HEARD FROM FOLKS HERE, 4233 03:12:46,610 --> 03:12:48,045 INDIVIDUALS WITH AUTISM LIKE ANY 4234 03:12:48,045 --> 03:12:49,680 OTHER PERSON IN SOCIETY ARE 4235 03:12:49,680 --> 03:12:51,281 LIKELY TO ENCOUNTER LAW 4236 03:12:51,281 --> 03:12:53,250 ENFORCEMENT OFFICERS AT SOME 4237 03:12:53,250 --> 03:12:53,450 POINT. 4238 03:12:53,450 --> 03:12:55,219 SOMETIMES AS A CRIME VICTIM 4239 03:12:55,219 --> 03:12:56,486 SUSPECT OR WITNESS. 4240 03:12:56,486 --> 03:12:57,888 UNFORTUNATELY, BECAUSE OF THE 4241 03:12:57,888 --> 03:13:00,991 LACK OF UNDERSTANDING OF AUTISM 4242 03:13:00,991 --> 03:13:01,725 IN THE LAW ENFORCEMENT 4243 03:13:01,725 --> 03:13:03,760 COMMUNITY, SOMETIMES THESE 4244 03:13:03,760 --> 03:13:05,862 INTERACTIONS END BADLY. 4245 03:13:05,862 --> 03:13:07,998 AND WITHOUT PROPER TRAINING, 4246 03:13:07,998 --> 03:13:10,167 CRIMINAL JUSTICE PERSONNEL MAY 4247 03:13:10,167 --> 03:13:12,869 MISINTERPRET THE CONDUCT OF 4248 03:13:12,869 --> 03:13:15,872 INDIVIDUALS WITH AUTISM AS 4249 03:13:15,872 --> 03:13:19,509 INTENTIONAL DISRESPECT OR 4250 03:13:19,509 --> 03:13:20,978 DISOBEDIENCE WHICH MAY LEAD TO 4251 03:13:20,978 --> 03:13:23,981 UNNECESSARY CRIMINAL JUSTICE 4252 03:13:23,981 --> 03:13:24,414 INVOLVEMENT. 4253 03:13:24,414 --> 03:13:28,552 A TOOL IS PROVIDING LAW 4254 03:13:28,552 --> 03:13:30,387 ENFORCEMENT WITH TRAINING TO 4255 03:13:30,387 --> 03:13:32,389 INCREASE CULTURAL COMPETENCY AND 4256 03:13:32,389 --> 03:13:33,557 HUMILITY FOR PEOPLE WITH AUTISM. 4257 03:13:33,557 --> 03:13:35,325 THIS AFTERNOON YOU WILL HEAR 4258 03:13:35,325 --> 03:13:37,628 FROM PEOPLE WHO HAVE WORKED WITH 4259 03:13:37,628 --> 03:13:40,063 LAW ENFORCEMENT AGENCIES TO 4260 03:13:40,063 --> 03:13:43,166 CULTURAL COMPETENCY AND CULTURAL 4261 03:13:43,166 --> 03:13:45,969 HUMILITY FOR PEOPLE WITH 4262 03:13:45,969 --> 03:13:46,570 DEVELOPMENT AND INTELLECTUAL 4263 03:13:46,570 --> 03:13:56,146 DISABILITIES INCLUDING AUTISM. 4264 03:13:56,146 --> 03:14:00,350 MY PRESENTATION WITH THE 4265 03:14:00,350 --> 03:14:01,618 AMERICANS WITH DISABILITY ACT IS 4266 03:14:01,618 --> 03:14:03,086 A PORTION AND WOULD PROBABLY 4267 03:14:03,086 --> 03:14:06,857 TAKE A FULL DAY IF NOT A FULL 4268 03:14:06,857 --> 03:14:08,892 SEMESTER TO COVER HOW THE 4269 03:14:08,892 --> 03:14:13,030 AMERICANS WITH DISABILITIES ACT 4270 03:14:13,030 --> 03:14:23,573 INTERSECTS WITH LAW ENFORCEMENT. 4271 03:14:24,975 --> 03:14:32,182 IT AFFORDS PROTECTION BASED ON 4272 03:14:32,182 --> 03:14:35,952 SEX, RACE, RELIGION OR NATIONAL 4273 03:14:35,952 --> 03:14:36,386 ORIGIN. 4274 03:14:36,386 --> 03:14:37,020 IMPORTANT RESOURCE FOR EVERYBODY 4275 03:14:37,020 --> 03:14:38,522 IS ADA.gov. 4276 03:14:38,522 --> 03:14:42,459 IT'S THE DEPARTMENT OF JUSTICE'S 4277 03:14:42,459 --> 03:14:44,494 WEBSITE AND IT IS A HUGE 4278 03:14:44,494 --> 03:14:46,163 RESOURCE OF INFORMATION. 4279 03:14:46,163 --> 03:14:49,966 YOU CAN FIND THE STATUTORY 4280 03:14:49,966 --> 03:14:50,801 LANGUAGE AND TECHNICAL 4281 03:14:50,801 --> 03:14:53,003 ASSISTANCE AND SETTLEMENT 4282 03:14:53,003 --> 03:14:55,439 AGREEMENTS AND BRIEFS AND 4283 03:14:55,439 --> 03:14:55,839 COMPLAINTS FILED. 4284 03:14:55,839 --> 03:14:57,474 MANY ARE FAMILIAR WITH THE 4285 03:14:57,474 --> 03:14:58,442 ARCHIVED VERSION. 4286 03:14:58,442 --> 03:15:03,447 I ENJOY USING THAT VERSION OVER 4287 03:15:03,447 --> 03:15:05,782 THE NEW VERSION FIND THAT AT 4288 03:15:05,782 --> 03:15:09,219 ARCHIVE ADA.gov. 4289 03:15:09,219 --> 03:15:10,420 THERE'S TWO TECHNICAL ASSISTANCE 4290 03:15:10,420 --> 03:15:12,055 PUBLICATIONS REALLY IMPORTANT. 4291 03:15:12,055 --> 03:15:14,124 WHEN YOU SEE THE BLUE HYPERTEXT 4292 03:15:14,124 --> 03:15:15,292 LINK, WHEN YOU GET THE 4293 03:15:15,292 --> 03:15:16,326 PRESENTATION LATER YOU CAN CLICK 4294 03:15:16,326 --> 03:15:20,063 ON THAT AND IT WILL GO RIGHT TO 4295 03:15:20,063 --> 03:15:23,934 THE DOJ TECHNICAL ASSISTANCE 4296 03:15:23,934 --> 03:15:25,001 PUBLICATION ONE IS COMMONLY 4297 03:15:25,001 --> 03:15:26,803 ASKED QUESTIONS AND EXAMPLES AND 4298 03:15:26,803 --> 03:15:29,072 RESOURCES TO SUPPORT CRIMINAL 4299 03:15:29,072 --> 03:15:31,475 JUSTICE ENTITIES IN COMPLIANCE 4300 03:15:31,475 --> 03:15:41,918 WITH TITLE II OF THE ADA. 4301 03:15:48,925 --> 03:15:51,528 IT COVERS COURTS, COMMUNITY 4302 03:15:51,528 --> 03:15:54,631 CORRECTIONS, COMMUNITY JUSTICE, 4303 03:15:54,631 --> 03:15:59,336 PROSECUTORS, STATE AND SOCIAL 4304 03:15:59,336 --> 03:16:09,880 SERVICE AGENCIES THAT ASSIST AND 4305 03:16:11,047 --> 03:16:12,749 WE CALL THEM CRIMINAL JUSTICE 4306 03:16:12,749 --> 03:16:14,818 BOARDS. 4307 03:16:14,818 --> 03:16:16,186 IT INCLUDES THE OPERATION OF 4308 03:16:16,186 --> 03:16:19,890 9-1-1 AND NOW 9-8-8 EMERGENCY 4309 03:16:19,890 --> 03:16:20,357 CENTERS. 4310 03:16:20,357 --> 03:16:23,226 LAW ENFORCEMENT ON THE STREET 4311 03:16:23,226 --> 03:16:23,927 INTERACTIONS INCLUDING TAKING 4312 03:16:23,927 --> 03:16:26,997 AND RESPONDING TO COMPLAINTS. 4313 03:16:26,997 --> 03:16:28,432 INTERVIEWS AND QUESTIONING 4314 03:16:28,432 --> 03:16:32,002 VICTIMS, WITNESSES OR SUSPECTS 4315 03:16:32,002 --> 03:16:36,006 AND DIVERSION PROGRAMS 4316 03:16:36,006 --> 03:16:37,007 ARRESTING, SETTING CONDITIONS 4317 03:16:37,007 --> 03:16:39,209 FOR PROBATION AND PAROLE, 4318 03:16:39,209 --> 03:16:40,310 PROVIDING MEDICAL SERVICES AND 4319 03:16:40,310 --> 03:16:43,713 ENFORCING THE LAW. 4320 03:16:43,713 --> 03:16:47,451 ALL ASPECTS OF THE CRIMINAL 4321 03:16:47,451 --> 03:16:50,487 JUSTICE SYSTEM ARE COVERED. 4322 03:16:50,487 --> 03:16:53,356 WHAT ARE EXAMPLES OF WHAT THE 4323 03:16:53,356 --> 03:16:55,525 ADA REQUIRES? 4324 03:16:55,525 --> 03:16:57,027 IF A LAW ENFORCEMENT AGENCY 4325 03:16:57,027 --> 03:17:02,532 FAILS TO MAKE PRACTICES OR 4326 03:17:02,532 --> 03:17:08,071 PROCEDU 4327 03:17:08,071 --> 03:17:08,705 PROCEDURES THAT'S A POSSIBLE 4328 03:17:08,705 --> 03:17:11,374 VIOLATION AND FAILING TO CONDUCT 4329 03:17:11,374 --> 03:17:12,742 INDIVIDUALIZED ASSESSMENT TO 4330 03:17:12,742 --> 03:17:15,579 ENSURE REQUESTING ACCESS, 4331 03:17:15,579 --> 03:17:17,747 FAILING TO COMMUNICATE IN A WAY 4332 03:17:17,747 --> 03:17:19,115 AN INDIVIDUAL WITH A DISABILITY 4333 03:17:19,115 --> 03:17:21,852 UNDERSTAND AND EFFECTIVE 4334 03:17:21,852 --> 03:17:25,188 COMMUNICATION SAY CORE PRINCIPLE 4335 03:17:25,188 --> 03:17:26,890 OF THE ADA. 4336 03:17:26,890 --> 03:17:28,658 SCREENING OUT PEOPLE WITH 4337 03:17:28,658 --> 03:17:29,259 DISABILITIES FROM PROGRAMS. 4338 03:17:29,259 --> 03:17:32,095 AAL FACILITY THAT SAYS YOU HAVE 4339 03:17:32,095 --> 03:17:32,696 AUTISM. 4340 03:17:32,696 --> 03:17:35,332 YOU CAN'T PARTICIPATE IN AN 4341 03:17:35,332 --> 03:17:37,000 EARLY RELEASE PROGRAM. 4342 03:17:37,000 --> 03:17:38,969 THAT'S A POTENTIAL VIOLATION. 4343 03:17:38,969 --> 03:17:42,405 REALLY IMPORTANT UNDER THE ADA, 4344 03:17:42,405 --> 03:17:44,641 ONE SIZE SOLUTIONS DO NOT FIT 4345 03:17:44,641 --> 03:17:45,075 ALL. 4346 03:17:45,075 --> 03:17:48,578 AND AS YOU CAN SEE FROM THE 4347 03:17:48,578 --> 03:17:50,847 ILLUSTRATION, NOT EVERYONE IS 4348 03:17:50,847 --> 03:17:52,716 GOING TO FIT ON THE SAME SIZED 4349 03:17:52,716 --> 03:17:52,983 BICYCLE. 4350 03:17:52,983 --> 03:17:55,719 IT'S REALLY IMPORTANT WE AIM NOT 4351 03:17:55,719 --> 03:17:58,955 FOR EQUALITY THE SAME SIZE 4352 03:17:58,955 --> 03:18:00,524 BICYCLE BUT EQUITY. 4353 03:18:00,524 --> 03:18:01,525 THIS IS A CORE PRINCIPLE UNDER 4354 03:18:01,525 --> 03:18:03,560 THE ADA. 4355 03:18:03,560 --> 03:18:06,496 YOU CAN SEE IN THE FIRST PANEL 4356 03:18:06,496 --> 03:18:08,164 WE HAVE EQUALITY. 4357 03:18:08,164 --> 03:18:11,668 NO CURB CUT, NO AUDIO FOR WHAT 4358 03:18:11,668 --> 03:18:14,571 THE TRAFFIC SIGNALS ARE 4359 03:18:14,571 --> 03:18:17,007 ANNOUNCING, AND THAT IS NOT 4360 03:18:17,007 --> 03:18:17,340 EQUITY. 4361 03:18:17,340 --> 03:18:20,110 IF YOU LOOK AT THE SECOND PANEL 4362 03:18:20,110 --> 03:18:24,281 YOU'LL SEE KWLT. 4363 03:18:24,281 --> 03:18:26,550 EVERYONE GETS WHAT THEY THESE 4364 03:18:26,550 --> 03:18:29,052 UNDERSTANDING THE BARRIERS, 4365 03:18:29,052 --> 03:18:29,953 CIRCUMSTANCES AND CONDITIONS. 4366 03:18:29,953 --> 03:18:32,889 IT'S THE SAME THING WHEN WE'RE 4367 03:18:32,889 --> 03:18:33,790 TALKING ABOUT AUTISM OR OTHER 4368 03:18:33,790 --> 03:18:34,824 INTELLECTUAL AND DEVELOPMENT 4369 03:18:34,824 --> 03:18:35,158 DISABILITIES. 4370 03:18:35,158 --> 03:18:38,128 YOU HAVE TO AIM FOR KWLT NOT 4371 03:18:38,128 --> 03:18:39,863 JUST EQUALITY. 4372 03:18:39,863 --> 03:18:43,500 AND THE ADA PROHIBITS 4373 03:18:43,500 --> 03:18:46,036 DISCRIMINATION NOT JUST BASED ON 4374 03:18:46,036 --> 03:18:48,238 AFFIRMATIVE ANIMUS BUT 4375 03:18:48,238 --> 03:18:50,106 THOUGHTLESSNESS, APATHY AND 4376 03:18:50,106 --> 03:18:54,744 STEREOTYPES ABOUT PEOPLE WITH 4377 03:18:54,744 --> 03:18:55,211 DISABILITIES. 4378 03:18:55,211 --> 03:18:57,380 EXAMPLES OF FAILURES TO MODIFY 4379 03:18:57,380 --> 03:19:00,684 PRACTICE OR PROCEDURES, REALLY 4380 03:19:00,684 --> 03:19:00,951 IMPORTANT. 4381 03:19:00,951 --> 03:19:03,954 FAILING TO DEPLOY ALTERNATE 4382 03:19:03,954 --> 03:19:06,323 RESPONSES FOR CALLS AND FAILING 4383 03:19:06,323 --> 03:19:07,257 TO COORDINATE WITH COMMUNITY 4384 03:19:07,257 --> 03:19:08,158 MENTAL HEALTH AGENCIES. 4385 03:19:08,158 --> 03:19:12,329 IF YOU LOOK AT THE DEPARTMENT OF 4386 03:19:12,329 --> 03:19:16,333 JUSTICE' LETTER OF FINDING AND 4387 03:19:16,333 --> 03:19:18,501 KENTUCKY INVOLVING BRIONA TAYLOR 4388 03:19:18,501 --> 03:19:20,570 THERE'S A NINE-PAGE DISCUSSION 4389 03:19:20,570 --> 03:19:21,671 OF AMERICANS WITH DISABILITY ACT 4390 03:19:21,671 --> 03:19:25,008 AND FAILING TO MODIFY THEIR 4391 03:19:25,008 --> 03:19:26,476 PRACTICES. 4392 03:19:26,476 --> 03:19:27,877 DENY A REQUEST FOR SUPPORT 4393 03:19:27,877 --> 03:19:30,614 PERSON TO ASSIST AN INDIVIDUAL 4394 03:19:30,614 --> 03:19:31,982 WITH INTELLECTUAL OR DEVELOPMENT 4395 03:19:31,982 --> 03:19:40,390 DISABILITIES DURING AN 4396 03:19:40,390 --> 03:19:41,057 INTERROGATION AND PEOPLE WITH 4397 03:19:41,057 --> 03:19:43,526 AUTISM ARE MORE LIKELY TO BE 4398 03:19:43,526 --> 03:19:44,928 AGREEABLE AND GET THEM IN 4399 03:19:44,928 --> 03:19:47,931 TROUBLE INCLUDING FALSE 4400 03:19:47,931 --> 03:19:48,264 CONCEPTIONS. 4401 03:19:48,264 --> 03:19:51,134 A GED PROGRAM THAT FAILS TO 4402 03:19:51,134 --> 03:19:52,335 MODIFY THE PROGRAM FOR PEOPLE 4403 03:19:52,335 --> 03:19:53,770 WITH DISABILITIES IMPORTANT IN 4404 03:19:53,770 --> 03:19:54,070 CORRECTIONS. 4405 03:19:54,070 --> 03:19:55,739 EVERYTHING NEEDS TO BE MODIFIED 4406 03:19:55,739 --> 03:20:00,944 TO ENSURE PEOPLE WITH 4407 03:20:00,944 --> 03:20:02,312 DISABILITIES GET EQUITY. 4408 03:20:02,312 --> 03:20:04,114 SO IN THE DEPARTMENT OF JUSTICE' 4409 03:20:04,114 --> 03:20:06,983 LETTER OF FINDING IT EX PLAINS 4410 03:20:06,983 --> 03:20:08,251 THE LOUISVILLE METRO COULD 4411 03:20:08,251 --> 03:20:10,153 MODIFY POLICIES AND PROCEDURES 4412 03:20:10,153 --> 03:20:13,623 IN TRAINING PROGRAM AND DEPLOY 4413 03:20:13,623 --> 03:20:15,191 COMMUNITY-BASED PROVIDER 4414 03:20:15,191 --> 03:20:17,494 OPERATOR MOBILE TEAMS TO 4415 03:20:17,494 --> 03:20:18,294 BEHAVIORAL HEALTH CALLS BOTH 4416 03:20:18,294 --> 03:20:21,031 INITIAL CALL FOR SERVICE AND EP 4417 03:20:21,031 --> 03:20:23,199 EN COULDN'TERS WHEN AN OFFICER 4418 03:20:23,199 --> 03:20:25,035 DETERMINE A POLICE RESPONSE NOT 4419 03:20:25,035 --> 03:20:27,904 NECESSARY AND DOJ POINTED OUT 4420 03:20:27,904 --> 03:20:38,548 WHEN SOMEONE IS IN CARDIAC 4421 03:20:38,548 --> 03:20:43,553 ARREST THEY WOULD CALLED OUT FOR 4422 03:20:43,553 --> 03:20:45,321 HELP AND BEHAVIORAL HEALTH FOCUS 4423 03:20:45,321 --> 03:20:47,323 RESPONSE SHOULD BE AVAILABLE TO 4424 03:20:47,323 --> 03:20:48,024 PEOPLE EXPERIENCING BEHAVIORAL 4425 03:20:48,024 --> 03:20:50,326 HEALTH ISSUES INSTEAD OF 4426 03:20:50,326 --> 03:20:50,927 TRADITIONAL LAW ENFORCEMENT 4427 03:20:50,927 --> 03:20:51,695 RESPONSE WHEN APPROPRIATE. 4428 03:20:51,695 --> 03:20:53,363 AGAIN, THIS IS FROM THE 4429 03:20:53,363 --> 03:20:56,466 DEPARTMENT'S LETTER OF FINDING. 4430 03:20:56,466 --> 03:20:58,768 SYSTEMIC CONSIDERATIONS ARE 4431 03:20:58,768 --> 03:21:00,570 REALLY IMPORTANT IN THIS AREA 4432 03:21:00,570 --> 03:21:02,338 AND THAT'S THE PLAN AHEAD STUFF. 4433 03:21:02,338 --> 03:21:05,475 THE PROACTIVE STUFF AND THAT 4434 03:21:05,475 --> 03:21:07,610 MEANS DOING THINGS LIKE TRAINING 4435 03:21:07,610 --> 03:21:09,079 CRIMINAL JUSTICE PERSONNEL, 4436 03:21:09,079 --> 03:21:11,614 CONDUCTING REVIEWS OF POLICIES 4437 03:21:11,614 --> 03:21:14,350 AND PROCEDURES, VERY IMPORTANT 4438 03:21:14,350 --> 03:21:15,385 FOR LAW ENFORCEMENT TO LOOK AT 4439 03:21:15,385 --> 03:21:18,988 THEIR POLICIES AND PROCEDURES 4440 03:21:18,988 --> 03:21:22,859 AND IACP WILL BE ON THE PANEL 4441 03:21:22,859 --> 03:21:24,728 AND TALK ABOUT MODEL POLICIES 4442 03:21:24,728 --> 03:21:26,730 THEY HAVE AND COLLABORATING WITH 4443 03:21:26,730 --> 03:21:28,131 MENTAL HEALTH SERVICES AND 4444 03:21:28,131 --> 03:21:30,333 THAT'S A TOPIC DISCUSSED IN THE 4445 03:21:30,333 --> 03:21:31,601 LOUISVILLE PROGRAM AND YOU'RE 4446 03:21:31,601 --> 03:21:35,038 GOING TO ALSO SEE WHAT THE ARC 4447 03:21:35,038 --> 03:21:37,006 OF NORTHERN VIRGINIA AND LAUDER 4448 03:21:37,006 --> 03:21:38,241 ARE DOING AND WE'LL TALK ABOUT 4449 03:21:38,241 --> 03:21:41,845 THE PROGRAM GENERALLY AS WELL. 4450 03:21:41,845 --> 03:21:45,982 WHAT ARE EXAMPLES HOW TO ENSURE 4451 03:21:45,982 --> 03:21:46,449 ACCESSIBILITY? 4452 03:21:46,449 --> 03:21:47,484 TRAIN LAW ENFORCEMENT OFFICERS 4453 03:21:47,484 --> 03:21:49,052 WHEN RESPONDING TO A PERSON IN 4454 03:21:49,052 --> 03:21:50,353 MENTAL HEALTH CRISIS WHO DOES 4455 03:21:50,353 --> 03:21:52,489 NOT POSE A SIGNIFICANT SAFETY 4456 03:21:52,489 --> 03:21:53,623 THREAT THEY SHOULD CONSIDER 4457 03:21:53,623 --> 03:21:57,026 PERFORMING TIME AND SPACE TO 4458 03:21:57,026 --> 03:21:59,529 CALM THE SITUATION 4459 03:21:59,529 --> 03:21:59,863 DE-ESCALATION. 4460 03:21:59,863 --> 03:22:02,298 THE COURT REQUIRING COURT STAFF 4461 03:22:02,298 --> 03:22:03,900 TO REASONABLE MODIFICATION TO 4462 03:22:03,900 --> 03:22:06,569 ALLOW QUALIFIED INDIVIDUALS WITH 4463 03:22:06,569 --> 03:22:10,607 AUTISM TO PARTICIPATE IN 4464 03:22:10,607 --> 03:22:11,274 DIVERSION PROGRAMS AND SPECIALTY 4465 03:22:11,274 --> 03:22:13,042 COURTS. 4466 03:22:13,042 --> 03:22:15,411 IN CORRECTIONS, IMPLEMENT POLICY 4467 03:22:15,411 --> 03:22:17,147 ENCOURAGE CORRECTION STAFF TO 4468 03:22:17,147 --> 03:22:19,649 SEEK ASSISTANCE FROM CRISIS 4469 03:22:19,649 --> 03:22:20,283 INTERVENTION TEAMS AND MENTAL 4470 03:22:20,283 --> 03:22:24,053 HEALTH PROFESSIONALS WHEN 4471 03:22:24,053 --> 03:22:26,523 INTERACTING WITH INMATES THAT 4472 03:22:26,523 --> 03:22:28,424 EXHIBIT NEGATIVE BEHAVIORS AND 4473 03:22:28,424 --> 03:22:30,360 TRAIN STAFF IN THE USE OF 4474 03:22:30,360 --> 03:22:32,061 DE-ESCALATION TECHNIQUES AND 4475 03:22:32,061 --> 03:22:33,329 FORGO TREATMENT AND PROVIDE 4476 03:22:33,329 --> 03:22:36,266 TREATMENT WHERE APPARENT A 4477 03:22:36,266 --> 03:22:39,669 PRISONER'S BEHAVIOR WAS RELEVANT 4478 03:22:39,669 --> 03:22:40,937 TO A DISABILITY. 4479 03:22:40,937 --> 03:22:44,040 INCREASED COLLABORATION AND 4480 03:22:44,040 --> 03:22:45,141 IMPROVED RESOURCE COLLABORATION 4481 03:22:45,141 --> 03:22:45,742 BETWEEN DISABILITY SERVICE 4482 03:22:45,742 --> 03:22:49,012 SYSTEMS AND AGENCIES CAN HELP 4483 03:22:49,012 --> 03:22:50,513 REDUCE DISPARITIES WITH PEOPLE 4484 03:22:50,513 --> 03:22:53,483 WHO HAVE DISABILITIES. 4485 03:22:53,483 --> 03:22:56,786 AND ACTIONS REQUIRED BY THE ADA 4486 03:22:56,786 --> 03:22:58,321 ARE NOT SPECIAL PRIVILEGE. 4487 03:22:58,321 --> 03:22:59,956 IT'S A MYTH A LOT OF PEOPLE 4488 03:22:59,956 --> 03:23:01,157 BELIEVE INSTEAD MEASURES TO 4489 03:23:01,157 --> 03:23:11,701 ENSURE EQUITY AND ACCESSIBILITY. 4490 03:23:12,669 --> 03:23:14,270 IT'S IMPORTANT TO RECOGNIZE 4491 03:23:14,270 --> 03:23:15,572 PEOPLE WITH DISABILITY ARE 4492 03:23:15,572 --> 03:23:17,540 LIKELY TO BE VICTIM OF CRIME 4493 03:23:17,540 --> 03:23:19,609 LIKE RAPE AND SEXUAL ASSAULT. 4494 03:23:19,609 --> 03:23:21,911 THREE TIMES MORE LIKELY. 4495 03:23:21,911 --> 03:23:24,113 IT'S IMPORTANT LAW ENFORCEMENT 4496 03:23:24,113 --> 03:23:26,583 TAKES SERIOUSLY THE COMPLAINTS 4497 03:23:26,583 --> 03:23:29,052 OF PEOPLE WITH IDD INCLUDING 4498 03:23:29,052 --> 03:23:32,222 AUTISM. 4499 03:23:32,222 --> 03:23:33,056 THOSE WITH COGNITIVE 4500 03:23:33,056 --> 03:23:36,125 DISABILITIES HAVE THE HIGHEST 4501 03:23:36,125 --> 03:23:38,328 RATE OF TOTAL VICTIMIZATION 4502 03:23:38,328 --> 03:23:39,195 AMONG RATES MEASURED. 4503 03:23:39,195 --> 03:23:41,497 21% OF UNREPORTED VIOLENCE 4504 03:23:41,497 --> 03:23:42,966 AGAINST PERSONS WITH 4505 03:23:42,966 --> 03:23:44,334 DISABILITIES WAS NOT REPORTED 4506 03:23:44,334 --> 03:23:45,768 BECAUSE THE VICTIM DID NOT THINK 4507 03:23:45,768 --> 03:23:53,743 THE POLICE WOULD HELP. 4508 03:23:53,743 --> 03:23:56,179 THERE'S IT THERE'S A THOUGHT 4509 03:23:56,179 --> 03:23:59,015 PROCESS WE COULD WORK ON. 4510 03:23:59,015 --> 03:24:00,917 COMMUNICATION HAS BEEN IMPORTANT 4511 03:24:00,917 --> 03:24:02,051 FOR THE EASTERN DISTRICT OF 4512 03:24:02,051 --> 03:24:06,723 VIRGINIA. 4513 03:24:06,723 --> 03:24:09,759 AND WE HAVE WORKED WITH THE ARC 4514 03:24:09,759 --> 03:24:14,497 OF LAUDEN'S DISABILITY COALITION 4515 03:24:14,497 --> 03:24:17,734 AND SEE THE MEETING WE HELD AND 4516 03:24:17,734 --> 03:24:19,168 THE SHERIFF'S DEPARTMENT IS 4517 03:24:19,168 --> 03:24:21,271 THERE AND FOLKS FROM THE PUBLIC 4518 03:24:21,271 --> 03:24:24,107 DEFENDER'S OFFICE WAS THERE AND 4519 03:24:24,107 --> 03:24:26,376 COMMONWEALTH ATTORNEYS OFFICE IS 4520 03:24:26,376 --> 03:24:28,411 NOW ON THIS AS WELL AND MANY 4521 03:24:28,411 --> 03:24:34,517 STAFF MEMBERS FROM THE ARC OF 4522 03:24:34,517 --> 03:24:37,020 LO 4523 03:24:37,020 --> 03:24:46,696 LOUDON -- LOUDOUN AND I'VE 4524 03:24:46,696 --> 03:24:51,901 GIVEN PRESENTATIONS TO THE 4525 03:24:51,901 --> 03:24:52,602 VIRGINIA DEPARTMENT OF 4526 03:24:52,602 --> 03:24:56,039 CORRECTI 4527 03:24:56,039 --> 03:24:58,775 CORRECTIONS THEY HAVE AN ANNUAL 4528 03:24:58,775 --> 03:24:59,776 ADA COORDINATEERS TRAINING AND 4529 03:24:59,776 --> 03:25:02,545 FOR THE COMMONWEALTH OF VIRGINIA 4530 03:25:02,545 --> 03:25:05,915 AND THE PAST OCTOBER AT THE 4531 03:25:05,915 --> 03:25:07,216 INTERNATIONAL ASSOCIATION OF 4532 03:25:07,216 --> 03:25:08,384 POLICE I GAVE MY LONG FORM 4533 03:25:08,384 --> 03:25:11,421 PRESENTATION ADA AND LAW 4534 03:25:11,421 --> 03:25:11,721 ENFORCEMENT. 4535 03:25:11,721 --> 03:25:13,122 WHY IS THIS IMPORTANT? 4536 03:25:13,122 --> 03:25:15,525 WE'RE OUT IN THE COMMUNITY 4537 03:25:15,525 --> 03:25:17,260 DISCUSSING THESE ISSUES. 4538 03:25:17,260 --> 03:25:19,595 IT'S NOT JUST AN ACADEMIC 4539 03:25:19,595 --> 03:25:20,330 DISCUSSION OR FOR THIS 4540 03:25:20,330 --> 03:25:23,733 PARTICULAR AGENCY. 4541 03:25:23,733 --> 03:25:26,169 IT'S IMPORTANT FOR THE PEOPLE 4542 03:25:26,169 --> 03:25:29,038 WHERE THE RUBBER MEETS THE ROAD 4543 03:25:29,038 --> 03:25:30,707 TO HERE THIS AND IMPORTANT FOR 4544 03:25:30,707 --> 03:25:31,708 US ALL TO FIND WAYS TO 4545 03:25:31,708 --> 03:25:33,776 COLLABORATE AND IT'S AMAZING THE 4546 03:25:33,776 --> 03:25:35,712 RELATIONSHIPS WE CAN BUILD AND 4547 03:25:35,712 --> 03:25:37,113 I'VE SEEN LEEN AND THE ARC OF 4548 03:25:37,113 --> 03:25:38,681 THE UNITED STATES BUILD IN 4549 03:25:38,681 --> 03:25:42,752 COMMUNITIES. 4550 03:25:42,752 --> 03:25:44,153 IT'S REALLY IMPORTANT AND A 4551 03:25:44,153 --> 03:25:46,356 SPOKE TO THE VIRGINIA 4552 03:25:46,356 --> 03:25:49,892 ASSOCIATION AND 86 OF THE 136 4553 03:25:49,892 --> 03:25:51,894 SHERIFF'S DEPARTMENTS IN DO ON 4554 03:25:51,894 --> 03:25:53,196 THE STREET ENFORCEMENT AND ALL 4555 03:25:53,196 --> 03:25:54,530 OR SOME HAVE SOME INTERACTION 4556 03:25:54,530 --> 03:25:55,498 WITH CORRECTIONS. 4557 03:25:55,498 --> 03:25:56,666 THEY OPERATE IT OR ARE PARTNERS 4558 03:25:56,666 --> 03:26:00,269 SO REALLY IMPORTANT. 4559 03:26:00,269 --> 03:26:02,305 I ALSO WANT TO SHOW YOU THIS IS 4560 03:26:02,305 --> 03:26:04,273 A FLYER THE ARC OF NORTHERN 4561 03:26:04,273 --> 03:26:07,377 VIRGINIA PUT OUT FOR ONE OF 4562 03:26:07,377 --> 03:26:10,480 THEIR PROGRAMS WHERE THEY DO 4563 03:26:10,480 --> 03:26:11,748 MOCK TRAFFIC STOPS AND THE 4564 03:26:11,748 --> 03:26:14,017 POLICE GET TOGETHER WITH PEOPLE 4565 03:26:14,017 --> 03:26:14,851 WITHIN INTELLECTUAL AND 4566 03:26:14,851 --> 03:26:16,219 DEVELOPMENT DISABILITIES AND 4567 03:26:16,219 --> 03:26:18,621 SOMETIMES THIS IS THE FIRST 4568 03:26:18,621 --> 03:26:19,689 OPPORTUNITY FOR PEOPLE WITH 4569 03:26:19,689 --> 03:26:20,690 INTELLECTUAL AND DEVELOPMENT 4570 03:26:20,690 --> 03:26:23,760 DISABILITIES TO BE IN A 4571 03:26:23,760 --> 03:26:24,460 NON-THREAT JING SITUATION WITH 4572 03:26:24,460 --> 03:26:24,894 POLICE DEPARTMENTS. 4573 03:26:24,894 --> 03:26:25,561 IT'S ALSO AN OPPORTUNITY FOR THE 4574 03:26:25,561 --> 03:26:28,297 POLICE DEPARTMENTS TO GET TO 4575 03:26:28,297 --> 03:26:29,232 KNOW PEOPLE IN THE COMMUNITY AND 4576 03:26:29,232 --> 03:26:32,602 IT'S REALLY IMPORTANT AND IT'S A 4577 03:26:32,602 --> 03:26:34,570 GREAT PROGRAM AND I KNOW 4578 03:26:34,570 --> 03:26:35,271 MONTGOMERY PROGRAM WILL TALK 4579 03:26:35,271 --> 03:26:38,708 ABOUT WHAT THEY DO IN A SIMILAR 4580 03:26:38,708 --> 03:26:39,275 VEIN. 4581 03:26:39,275 --> 03:26:41,778 I WELCOME HEARING FROM FOLKS. 4582 03:26:41,778 --> 03:26:44,247 PLEASE FEEL FREE TO CONTACT ME. 4583 03:26:44,247 --> 03:26:45,882 THIS IS A VERY IMPORTANT TOPIC 4584 03:26:45,882 --> 03:26:46,282 FOR ME. 4585 03:26:46,282 --> 03:26:51,554 I HAVE A SISTER WITH 4586 03:26:51,554 --> 03:26:52,722 DISABILITIES AND IT'S BEEN A 4587 03:26:52,722 --> 03:26:54,457 LIFE LONG CONCERN AND I'VE BEEN 4588 03:26:54,457 --> 03:26:55,425 A LIFE LONG ADVOCATE IN THIS 4589 03:26:55,425 --> 03:26:55,691 AREA. 4590 03:26:55,691 --> 03:26:57,093 THANK YOU AND I KNOW WE HAVE 4591 03:26:57,093 --> 03:27:07,570 SOME OTHER SPEAKERS AS WELL. 4592 03:27:09,005 --> 03:27:10,006 >> Josh: THANK YOU VERY MUCH. 4593 03:27:10,006 --> 03:27:13,476 WE'LL MOVE LOOK AND TAKE 4594 03:27:13,476 --> 03:27:14,410 QUESTIONS AT THE END. 4595 03:27:14,410 --> 03:27:16,913 SUSAN, DID YOU WANT TO MAKE A 4596 03:27:16,913 --> 03:27:17,313 COMMENT FIRST? 4597 03:27:17,313 --> 03:27:19,549 >> Susan: WE WANTED TO MAKE A 4598 03:27:19,549 --> 03:27:22,018 COMMENT THAT WE ARE TALKING 4599 03:27:22,018 --> 03:27:24,053 ABOUT POLICE LAW ENFORCEMENT 4600 03:27:24,053 --> 03:27:24,921 SITUATIONS AND IF ANYONE FEELS 4601 03:27:24,921 --> 03:27:26,456 VERY SENSITIVE ABOUT THAT WE DO 4602 03:27:26,456 --> 03:27:28,057 HAVE A SENSORY ROOM. 4603 03:27:28,057 --> 03:27:29,659 CAN STEP AWAY OR FEEL FREE TO 4604 03:27:29,659 --> 03:27:30,860 STEP AWAY FROM THE MEETING IF 4605 03:27:30,860 --> 03:27:34,163 YOU NEED A BREAK BUT WE WILL BE 4606 03:27:34,163 --> 03:27:34,831 TALKING ABOUT POTENTIALLY ABOUT 4607 03:27:34,831 --> 03:27:35,231 SENSITIVE ISSUES. 4608 03:27:35,231 --> 03:27:42,538 THANK YOU. 4609 03:27:42,538 --> 03:27:49,812 >> OUR NEXT SPEAKER IS MARLEAN 4610 03:27:49,812 --> 03:27:51,247 PONDER THE AUTISM SOCIETY OF 4611 03:27:51,247 --> 03:27:52,548 AMERICA AND TALK ABOUT ADVOCACY 4612 03:27:52,548 --> 03:27:55,017 AND JUSTICE OF WHICH SHE IS THE 4613 03:27:55,017 --> 03:27:55,384 DIRECTOR. 4614 03:27:55,384 --> 03:27:58,321 >> THANK YOU, HELLO, EVERYBODY. 4615 03:27:58,321 --> 03:28:00,656 CARLEAN PONDER AGAIN. 4616 03:28:00,656 --> 03:28:04,127 THE AUTISM JUSTICE CENTER IS A 4617 03:28:04,127 --> 03:28:05,027 BRAND NEW INITIATIVE FOR THE 4618 03:28:05,027 --> 03:28:06,863 AUTISM SOCIETY AND IT'S FUNNY 4619 03:28:06,863 --> 03:28:09,198 BECAUSE WE NAMED OUR NAME TO THE 4620 03:28:09,198 --> 03:28:12,168 AUTISM JUSTICE CENTER BECAUSE 4621 03:28:12,168 --> 03:28:13,569 PEOPLE FELT THAT WAS DIRECTLY TO 4622 03:28:13,569 --> 03:28:15,838 THE POINT OF WHAT WE'RE DOING. 4623 03:28:15,838 --> 03:28:17,707 A LITTLE BIT ABOUT MY 4624 03:28:17,707 --> 03:28:21,277 BACKGROUND. 4625 03:28:21,277 --> 03:28:21,844 I'M AN ATTORNEY. 4626 03:28:21,844 --> 03:28:26,182 I DID REGULATORY WORK WITH THE 4627 03:28:26,182 --> 03:28:27,016 SOCIAL SECURITY ADMINISTRATION. 4628 03:28:27,016 --> 03:28:29,185 I'VE DONE FEDERAL POLICY WORK 4629 03:28:29,185 --> 03:28:35,825 WITH MY GOOD COLLEAGUE AND 4630 03:28:35,825 --> 03:28:37,927 FRIEND LEANN AND WORK AROUND 4631 03:28:37,927 --> 03:28:38,861 MENTAL HEALTH DISABILITIES AND 4632 03:28:38,861 --> 03:28:40,296 POLICING IN THE LOCAL COMMUNITY. 4633 03:28:40,296 --> 03:28:41,631 THE TOPIC OF CRISIS RESPONSE AND 4634 03:28:41,631 --> 03:28:44,967 HOW WE RESPOND TO PEOPLE IN 4635 03:28:44,967 --> 03:28:45,635 MENTAL HEALTH CRISES IS NEAR AND 4636 03:28:45,635 --> 03:28:50,907 DEAR. 4637 03:28:50,907 --> 03:28:52,775 THE AUTISM JUSTICE CENTER WHICH 4638 03:28:52,775 --> 03:28:55,811 IS A BRAND NEW INITIATIVE FOR 4639 03:28:55,811 --> 03:28:57,713 THE AUTISM SOCIETY SERVES AS A 4640 03:28:57,713 --> 03:28:59,649 RESOURCE FOR AUTISTIC PEOPLE, 4641 03:28:59,649 --> 03:29:02,151 FAMILY MEMBERS AND ADVOCATES 4642 03:29:02,151 --> 03:29:05,421 IMPACTED BY ALL FORMS OF 4643 03:29:05,421 --> 03:29:07,256 DISCRIMINATION, CRIMINAL JUSTICE 4644 03:29:07,256 --> 03:29:09,192 IS ONE WITH FORM WE'RE HOPING TO 4645 03:29:09,192 --> 03:29:11,093 MOVE INTO OTHER AREAS AROUND 4646 03:29:11,093 --> 03:29:12,662 HOUSING AND HEALTH CARE AND 4647 03:29:12,662 --> 03:29:14,597 EMPLOYMENT AS WE GO ALONG IN THE 4648 03:29:14,597 --> 03:29:16,599 EDUCATION SYSTEM. 4649 03:29:16,599 --> 03:29:19,101 BUT WE'RE STARTING WITH THE 4650 03:29:19,101 --> 03:29:20,937 CRIMINAL LEGAL SYSTEM BECAUSE OF 4651 03:29:20,937 --> 03:29:23,739 ITS IMPACT ON PEOPLE AND THE 4652 03:29:23,739 --> 03:29:24,173 SEVERITY. 4653 03:29:24,173 --> 03:29:25,908 SO WHO WE ARE. 4654 03:29:25,908 --> 03:29:30,046 THE AUTISM JUSTICE CENTER HAS A 4655 03:29:30,046 --> 03:29:30,513 FANTASTIC TASK FORCE. 4656 03:29:30,513 --> 03:29:32,582 ON THE TASK FORCE WE HAVE 4657 03:29:32,582 --> 03:29:33,616 DIRECTLY IMPACTED INDIVIDUALS. 4658 03:29:33,616 --> 03:29:38,688 SO THAT MEANS INDIVIDUALS WHO 4659 03:29:38,688 --> 03:29:40,256 HAVE HAD SOME EXPERIENCE WITH 4660 03:29:40,256 --> 03:29:41,891 THE CRIMINAL LEGAL SYSTEM WHERE 4661 03:29:41,891 --> 03:29:43,926 THEY'RE AUTISM DID IN FACT 4662 03:29:43,926 --> 03:29:45,962 INTERACT WITH A PLA PARTICULAR 4663 03:29:45,962 --> 03:29:46,262 SITUATIONS. 4664 03:29:46,262 --> 03:29:48,497 WE HAVE LAWYERS. 4665 03:29:48,497 --> 03:29:50,766 WE HAVE PROFESSIONAL ADVOCATES. 4666 03:29:50,766 --> 03:29:52,535 WHAT WE'VE BEEN ABLE TO DO EBB A 4667 03:29:52,535 --> 03:29:56,472 SHORT AMOUNT OF TIME IS COME 4668 03:29:56,472 --> 03:29:58,608 TOGETHER AND PROVIDE EXPERTISE 4669 03:29:58,608 --> 03:30:00,943 TO PEOPLE AND THEIR FAMILIES WHO 4670 03:30:00,943 --> 03:30:03,613 ARE ENCOUNTERING SOME ASPECT OF 4671 03:30:03,613 --> 03:30:04,914 THE CRIMINAL LEGAL SYSTEM AT 4672 03:30:04,914 --> 03:30:05,681 THIS PARTICULAR MOMENT. 4673 03:30:05,681 --> 03:30:10,620 FOR EXAMPLE, I GOT A CALL FROM A 4674 03:30:10,620 --> 03:30:13,022 FAMILY YESTERDAY WHOSE SON WAS 4675 03:30:13,022 --> 03:30:14,824 IN A CAR ACCIDENT. 4676 03:30:14,824 --> 03:30:16,425 THERE WERE CRIMINAL CHARGES 4677 03:30:16,425 --> 03:30:17,893 ATTACHED TO THAT ACCIDENT AND 4678 03:30:17,893 --> 03:30:19,228 WERE CONCERNED ABOUT THE LEGAL 4679 03:30:19,228 --> 03:30:22,231 REPRESENTATION THEIR SON WAS 4680 03:30:22,231 --> 03:30:25,835 GETTING BECAUSE THEY DIDN'T FEEL 4681 03:30:25,835 --> 03:30:27,637 THE ATTORNEY UNDERSTOOD AND THE 4682 03:30:27,637 --> 03:30:29,105 IMPACT IT MAY HAVE HAD ON THEIR 4683 03:30:29,105 --> 03:30:31,540 SON'S REACTION TO THE CAR 4684 03:30:31,540 --> 03:30:31,807 ACCIDENT. 4685 03:30:31,807 --> 03:30:32,942 I WAS ABLE TO SHARE RESOURCES 4686 03:30:32,942 --> 03:30:40,283 WITH THEM. 4687 03:30:40,283 --> 03:30:42,451 BRIEFLY, I'M GOING TO TALK ABOUT 4688 03:30:42,451 --> 03:30:44,720 AUTISM AND THE JUSTICE SYSTEM 4689 03:30:44,720 --> 03:30:45,755 AND TALK A LITTLE BIT ABOUT RACE 4690 03:30:45,755 --> 03:30:47,156 AND AUTISM FROM WHAT WE HAVE 4691 03:30:47,156 --> 03:30:48,858 SEEN AND CURRENTLY SEEING. 4692 03:30:48,858 --> 03:30:51,227 SOME ISSUES WE'RE COVERING AT 4693 03:30:51,227 --> 03:30:53,029 THE AUTISM JUSTICE CENTER AND 4694 03:30:53,029 --> 03:30:54,230 SOME OF OUR RECOMMENDATIONS TO 4695 03:30:54,230 --> 03:31:01,237 MAKE IMPROVEMENTS. 4696 03:31:01,237 --> 03:31:04,807 AUTISM AND THE JUSTICE CENTER. 4697 03:31:04,807 --> 03:31:06,342 HERE'S WHAT'S OUT THERE. 4698 03:31:06,342 --> 03:31:07,810 AUTISTIC PEOPLE SEVEN TIMES MORE 4699 03:31:07,810 --> 03:31:13,015 LIKELY TO INTERACT WITH THE 4700 03:31:13,015 --> 03:31:17,820 JUSTICE SYSTEM THAN NON-AUTISTIC 4701 03:31:17,820 --> 03:31:20,790 AND COMES FROM BEING VICTIMIZED 4702 03:31:20,790 --> 03:31:22,191 AND INTERACTIONS WITH POLICE 4703 03:31:22,191 --> 03:31:25,361 OFFICERS MORE OFTEN. 4704 03:31:25,361 --> 03:31:27,663 IT ALSO COMES FROM HAVING MENTAL 4705 03:31:27,663 --> 03:31:29,298 HEALTH ISSUES, FOR EXAMPLE, I 4706 03:31:29,298 --> 03:31:34,136 THINK THE FIGURE IS 70% OF 4707 03:31:34,136 --> 03:31:36,672 AUTISTIC PEOPLE EXPERIENCE 4708 03:31:36,672 --> 03:31:37,006 ANXIETY. 4709 03:31:37,006 --> 03:31:42,845 THERE ARE OTHER FORMS OF MENTAL 4710 03:31:42,845 --> 03:31:45,748 HEALTH, BEHAVIORAL HEALTH NEEDS 4711 03:31:45,748 --> 03:31:49,952 THAT COULD INCREASE AN AUTISTIC 4712 03:31:49,952 --> 03:31:53,556 PERSON COMING IN CONTACT AND 4713 03:31:53,556 --> 03:31:57,460 OVERRELIANCE ON CALLING 9-1-1 4714 03:31:57,460 --> 03:31:59,395 AND A RESPONSE TO A MENTAL 4715 03:31:59,395 --> 03:32:02,598 HEALTH NEED. 4716 03:32:02,598 --> 03:32:04,500 AUTISTIC CHILDREN EXPERIENCE 4717 03:32:04,500 --> 03:32:06,702 DISPROPORTIONATE LEVELS OF 4718 03:32:06,702 --> 03:32:07,303 SCHOOL DISCIPLINE. 4719 03:32:07,303 --> 03:32:11,440 MOST OF US HAVE SEEN REPORTS OF 4720 03:32:11,440 --> 03:32:13,609 RESTRAINTS AND SECLUSION BEING 4721 03:32:13,609 --> 03:32:16,245 USED TO DEAL WITH KIDS WHO HAVE 4722 03:32:16,245 --> 03:32:17,680 BEHAVIORAL HEALTH NEEDS. 4723 03:32:17,680 --> 03:32:20,583 SOMETIMES SCHOOLS ALSO HAVE AN 4724 03:32:20,583 --> 03:32:21,283 OVERRELIANCE ON POLICE OFFICERS 4725 03:32:21,283 --> 03:32:25,020 TO INVENE IN THOSE SITUATIONS 4726 03:32:25,020 --> 03:32:29,091 EVEN WITH CHILDREN YOUNG AS 5 OR 4727 03:32:29,091 --> 03:32:34,163 7 WE'VE SEEN AS WELL. 4728 03:32:34,163 --> 03:32:39,034 SOMETIMES WE SEE BYLAW 4729 03:32:39,034 --> 03:32:40,503 ENFORCEMENT ENCOUNTERS BECAUSE 4730 03:32:40,503 --> 03:32:41,904 THERE'S A NEED FOR ASSISTANCE 4731 03:32:41,904 --> 03:32:45,474 EITHER FROM A CAREGIVER, PARENT, 4732 03:32:45,474 --> 03:32:49,011 TEACHER WHO DOES NEED SUPPORT 4733 03:32:49,011 --> 03:32:53,015 AND ASSISTANCE WHEN THERE IS 4734 03:32:53,015 --> 03:32:54,683 PHYSICAL AGGRESSION HAPPENING OR 4735 03:32:54,683 --> 03:32:54,950 POSSIBLE. 4736 03:32:54,950 --> 03:32:56,452 THAT ALSO INCREASES THE 4737 03:32:56,452 --> 03:32:57,920 LIKELIHOOD OF COMING INTO 4738 03:32:57,920 --> 03:32:59,588 CONTACT WITH THE CRIMINAL LEGAL 4739 03:32:59,588 --> 03:33:00,055 SYSTEM. 4740 03:33:00,055 --> 03:33:03,025 THERE'S SOME STATISTICS SHOWING 4741 03:33:03,025 --> 03:33:05,027 PLACES SUCH AS GROUP HOMES AND 4742 03:33:05,027 --> 03:33:08,998 DAY PROGRAMS ARE FREQUENT 4743 03:33:08,998 --> 03:33:09,665 CALLERS TO NRGS. 4744 03:33:09,665 --> 03:33:10,800 -- 9-1-1. 4745 03:33:10,800 --> 03:33:15,838 AT THE AUTISM JUSTICE CENTER 4746 03:33:15,838 --> 03:33:17,006 ANOTHER ISSUE WE'RE SEEING THAT 4747 03:33:17,006 --> 03:33:20,042 RELATE TO CONDUCT AROUND SEXUAL 4748 03:33:20,042 --> 03:33:22,378 BEHAVIOR THAT CAN EITHER BE IN 4749 03:33:22,378 --> 03:33:24,613 PERSON OR ONLINE BEHAVIOR AND IT 4750 03:33:24,613 --> 03:33:28,517 IS LEADING TO INCREASED CONTACT 4751 03:33:28,517 --> 03:33:32,955 WITH THE CRIMINAL LEGAL SYSTEM. 4752 03:33:32,955 --> 03:33:34,557 SO RACE AND AUTISM. 4753 03:33:34,557 --> 03:33:36,725 WE KNOW FEWER BLACK AND LATINO 4754 03:33:36,725 --> 03:33:39,962 CHILDREN ARE DIAGNOSED AS 4755 03:33:39,962 --> 03:33:40,963 AUTISTIC THOUGH THAT IS CHANGING 4756 03:33:40,963 --> 03:33:43,699 NOW WHICH IS A GOOD THING DUE TO 4757 03:33:43,699 --> 03:33:47,870 ACCESS AND AWARENESS THAT WASN'T 4758 03:33:47,870 --> 03:33:48,504 THERE PREVIOUSLY. 4759 03:33:48,504 --> 03:33:51,740 ASIAN CHILDREN HAPPEN TO HAVE 4760 03:33:51,740 --> 03:33:55,411 THE HIGHEST DIAGNOSIS RATE AND 4761 03:33:55,411 --> 03:33:57,913 THEY'RE NOT SURE IF IT'S RACKET 4762 03:33:57,913 --> 03:33:59,482 OR OVER DIAGNOSIS OR WHAT'S 4763 03:33:59,482 --> 03:34:00,449 GOING ON THERE. 4764 03:34:00,449 --> 03:34:01,617 BLACK AUTISTIC INDIVIDUALS ARE 4765 03:34:01,617 --> 03:34:03,452 MORE LIKELY TO BE HURT OR KILLED 4766 03:34:03,452 --> 03:34:08,123 DURING POLICE ENCOUNTERS AND 4767 03:34:08,123 --> 03:34:10,993 TRACKS WHAT WE KNOW ABOUT BLOCK 4768 03:34:10,993 --> 03:34:12,161 BLACK PEOPLE IN GENERAL DURING 4769 03:34:12,161 --> 03:34:17,533 POLICE ENCOUNTERS AND SENTENCED 4770 03:34:17,533 --> 03:34:18,601 TO LONGER PRISON TERMS AND 4771 03:34:18,601 --> 03:34:21,003 THAT'S A REFLECTION OF WHAT WE 4772 03:34:21,003 --> 03:34:22,905 KNOW ABOUT BLACK PEOPLE. 4773 03:34:22,905 --> 03:34:24,673 THAT'S IN THE CRIMINAL JUSTICE 4774 03:34:24,673 --> 03:34:24,907 SYSTEM. 4775 03:34:24,907 --> 03:34:29,044 SO WHEN YOU ADD AUTISM OR 4776 03:34:29,044 --> 03:34:31,180 ANOTHER DISABILITY YOU GET THE 4777 03:34:31,180 --> 03:34:33,015 SAME DISPROPORTIONATE RATES 4778 03:34:33,015 --> 03:34:36,552 THERE. 4779 03:34:36,552 --> 03:34:38,053 A COUPLE EXAMPLES. 4780 03:34:38,053 --> 03:34:44,226 AT THE AUTISM JUSTICE CENTER, 4781 03:34:44,226 --> 03:34:47,429 WE'RE PROUD TO HAVE OUR 4782 03:34:47,429 --> 03:34:47,963 AMBASSADOR. 4783 03:34:47,963 --> 03:34:51,600 NEALEY WAS 19-YEAR-OLD IN 4784 03:34:51,600 --> 03:34:53,235 VIRGINIA WHEN HE WAS SITTING 4785 03:34:53,235 --> 03:34:54,370 OUTSIDE OF A LIBRARY. 4786 03:34:54,370 --> 03:34:56,906 SOMEONE MADE A PHONE CALL SAYING 4787 03:34:56,906 --> 03:34:59,375 THEY SAW A SUSPICIOUS PERSON, I 4788 03:34:59,375 --> 03:35:02,745 THINK THEY IDENTIFIED HIM AS A 4789 03:35:02,745 --> 03:35:03,746 SUSPICIOUS BLACK PERSON AND 4790 03:35:03,746 --> 03:35:06,115 THINK THEY ALSO SAID THERE WAS A 4791 03:35:06,115 --> 03:35:07,182 GUN PRESENT. 4792 03:35:07,182 --> 03:35:10,185 WHEN THE POLICE OFFICER ARRIVED, 4793 03:35:10,185 --> 03:35:11,954 NEALEY AND THE POLICE OFFICER 4794 03:35:11,954 --> 03:35:15,624 HAD A DIFFICULT INTERACTION, 4795 03:35:15,624 --> 03:35:17,026 NEALEY EXPERIENCED A REACTION, 4796 03:35:17,026 --> 03:35:19,061 FIGHT OR FLIGHT REACTION WHICH 4797 03:35:19,061 --> 03:35:20,095 IS ALSO COMMON AND HE ASKED TO 4798 03:35:20,095 --> 03:35:22,131 BE LEFT ALONE, THAT DIDN'T 4799 03:35:22,131 --> 03:35:25,568 HAPPEN, THERE WAS A PHYSICAL 4800 03:35:25,568 --> 03:35:27,670 ALTERCATION, NEALEY WAS 4801 03:35:27,670 --> 03:35:31,140 ARRESTED, CHARGED WITH SEVERAL 4802 03:35:31,140 --> 03:35:33,709 CRIMES AND HAD A TERRIBLE 4803 03:35:33,709 --> 03:35:35,210 EXPERIENCE OF BEING INCARCERATED 4804 03:35:35,210 --> 03:35:37,813 I THINK MORE THAN 10 YEARS OR 4805 03:35:37,813 --> 03:35:39,949 AROUND 10 YEARS, LONG PERIODS OF 4806 03:35:39,949 --> 03:35:43,252 THAT WERE SPENT IN SOLITARY 4807 03:35:43,252 --> 03:35:45,988 CONFINEMENT OR OTHER FORMS OF 4808 03:35:45,988 --> 03:35:49,558 CONFINEMENT THAT WERE FRANKLY 4809 03:35:49,558 --> 03:35:49,925 TORTUROUS. 4810 03:35:49,925 --> 03:35:53,329 DUE TO A LOT OF ADVOCACY FROM 4811 03:35:53,329 --> 03:35:54,263 THE DISABILITY RIGHTS COMMUNITY 4812 03:35:54,263 --> 03:35:56,365 AND SOCIAL JUSTICE COMMUNITY AT 4813 03:35:56,365 --> 03:36:04,740 LARGE, HE WAS FINALLY RELEASED 4814 03:36:04,740 --> 03:36:07,710 AND GOT A CONDITIONAL PARDON 4815 03:36:07,710 --> 03:36:09,778 FROM THE STATE OF VIRGINIA AND 4816 03:36:09,778 --> 03:36:10,546 HE'S A WONDERFUL ADVOCATE AND 4817 03:36:10,546 --> 03:36:11,880 TELLS HIS STORY SO WELL AND PART 4818 03:36:11,880 --> 03:36:13,182 OF WHAT HE'S GIVING BACK TO 4819 03:36:13,182 --> 03:36:21,824 SOCIETY NOW. 4820 03:36:21,824 --> 03:36:24,893 ANOTHER INCIDENT WAS A MAN IN A 4821 03:36:24,893 --> 03:36:35,437 CAR ACCIDENT AND INJURED PEOPLE 4822 03:36:36,338 --> 03:36:38,574 AND TAKEN TO JAIL AND QUESTIONS 4823 03:36:38,574 --> 03:36:40,409 NOT THE HOSPITAL AND QUESTIONED 4824 03:36:40,409 --> 03:36:45,381 FOR HOURS WITHOUT AN ADVOCATE, 4825 03:36:45,381 --> 03:36:46,215 WITHOUT AW PARENT, WITHOUT AN 4826 03:36:46,215 --> 03:36:48,250 ATTORNEY, WHEN I SAW THE VIDEO 4827 03:36:48,250 --> 03:36:50,052 HE WAS BLEEDING AND CLEAR TO ME 4828 03:36:50,052 --> 03:37:00,596 THIS YOUNG MAN WAS DISORIENTED. 4829 03:37:20,716 --> 03:37:25,654 AND I HAVE QUESTIONS AND THERE'S 4830 03:37:25,654 --> 03:37:26,722 DIFFICULTIES IN THE JUDICIAL 4831 03:37:26,722 --> 03:37:31,193 SYSTEM WHEN IT COMES 4832 03:37:31,193 --> 03:37:33,028 DIFFERENTIATING FROM AUTISM AND 4833 03:37:33,028 --> 03:37:36,999 AUTISTIC PEOPLE DO NOT HAVE 4834 03:37:36,999 --> 03:37:43,939 INTELLECTUAL DEFICITS AND WE'RE 4835 03:37:43,939 --> 03:37:48,577 SEEING LOTS OF PROBLEMS AROUND 4836 03:37:48,577 --> 03:37:56,719 STRICT LIABILITY LAWS AND WITH 4837 03:37:56,719 --> 03:37:57,820 STRICT LIABILITY LAWS IF YOU DID 4838 03:37:57,820 --> 03:38:02,725 THE THING YOU'RE GUILTY AND IT'S 4839 03:38:02,725 --> 03:38:05,260 VERY HARD TO ADD IN A MITIGATING 4840 03:38:05,260 --> 03:38:05,861 DEFENSE OR MAY EXPLAIN THAT 4841 03:38:05,861 --> 03:38:10,132 BEHAVIOR. 4842 03:38:10,132 --> 03:38:12,234 SO AUTISM AND THE COURTS 4843 03:38:12,234 --> 03:38:15,170 DISTINGUISHING MENTAL ILLNESS. 4844 03:38:15,170 --> 03:38:17,506 WE KNOW IT'S A NEUROLOGICALLY 4845 03:38:17,506 --> 03:38:19,575 BASED DISABILITY AND SPECTRUM 4846 03:38:19,575 --> 03:38:22,144 WITH LOTS OF SYMPTOMS. 4847 03:38:22,144 --> 03:38:28,684 PEOPLE COULD BE ANYWHERE ON THE 4848 03:38:28,684 --> 03:38:32,054 SPECTRUM BUT MOSTLY IMPAIRS 4849 03:38:32,054 --> 03:38:33,622 SPECIAL LEARNING AND THAT CAN BE 4850 03:38:33,622 --> 03:38:35,691 DIFFICULT TO EXPLAIN SOMEONE NOT 4851 03:38:35,691 --> 03:38:37,392 FAMILIAR WITH DISABILITY OR 4852 03:38:37,392 --> 03:38:37,659 AUTISM. 4853 03:38:37,659 --> 03:38:40,129 IF YOU ARE DEFENDANT IN A CASE 4854 03:38:40,129 --> 03:38:42,431 AND DID SOMETHING, THERE'S A 4855 03:38:42,431 --> 03:38:45,267 CRIMINAL CHARGE ATTACHED AND YOU 4856 03:38:45,267 --> 03:38:48,337 GO BEFORE COURT IT'S VERY -- AND 4857 03:38:48,337 --> 03:38:51,206 IF YOU PRESENT AS IF YOU 4858 03:38:51,206 --> 03:38:55,444 UNDERSTAND PERFECTLY WHAT'S 4859 03:38:55,444 --> 03:38:59,515 HAPPENING AND NOT SOMEBODY WITH 4860 03:38:59,515 --> 03:39:02,618 AN OBVIOUS DISABLE THERE'S A 4861 03:39:02,618 --> 03:39:03,051 BIAS. 4862 03:39:03,051 --> 03:39:04,419 THE COURT MAY THINK IT'S NOT 4863 03:39:04,419 --> 03:39:10,425 PRESENT OR NOT THAT RELEVANT TO 4864 03:39:10,425 --> 03:39:11,059 THE CRIMINAL CHARGE. 4865 03:39:11,059 --> 03:39:19,434 THAT'S A HURDLE WE'RE FACING. 4866 03:39:19,434 --> 03:39:21,637 INTELLECTUAL VERSUS SOCIAL 4867 03:39:21,637 --> 03:39:21,937 LIMITATIONS. 4868 03:39:21,937 --> 03:39:23,005 THAT'S ANOTHER ONE BECAUSE WHEN 4869 03:39:23,005 --> 03:39:28,410 YOU'RE BEING CHARGED WITH A 4870 03:39:28,410 --> 03:39:32,014 CRIME AND YOU ARE HAVING TO 4871 03:39:32,014 --> 03:39:33,248 DEFEND YOURSELF AND YOUR ACTIONS 4872 03:39:33,248 --> 03:39:36,351 AND WANT TO TALK ABOUT A 4873 03:39:36,351 --> 03:39:37,753 STIMULUS THAT OCCURRED THAT WAS 4874 03:39:37,753 --> 03:39:39,454 DISABILITY RELATED THAT LED TO 4875 03:39:39,454 --> 03:39:42,891 THAT ACTION, IF YOU'RE ABLE TO 4876 03:39:42,891 --> 03:39:46,895 DO THAT WELL, THAT ACTUALLY MAY 4877 03:39:46,895 --> 03:39:49,031 BE A BIAS BECAUSE AGAIN THE 4878 03:39:49,031 --> 03:39:52,000 COURT LOOKS AT IT AND THE 4879 03:39:52,000 --> 03:39:54,670 PROSECUTOR LOOKS AT IT AS YOU'RE 4880 03:39:54,670 --> 03:39:55,838 CONVENIENTLY USING DISABILITY. 4881 03:39:55,838 --> 03:40:00,275 LIKE AS AN EXCUSE IN THIS CASE 4882 03:40:00,275 --> 03:40:01,510 WHERE IF YOU'RE ABLE TO COME 4883 03:40:01,510 --> 03:40:04,346 HERE AND TALK TO ME AND ABLE TO 4884 03:40:04,346 --> 03:40:07,883 EXPLAIN WHAT HAPPENED, I DON'T 4885 03:40:07,883 --> 03:40:11,854 SEE HOW DISABILITY IS A FACTOR. 4886 03:40:11,854 --> 03:40:14,323 SO, CONVEYING COMPROMISE AGAINST 4887 03:40:14,323 --> 03:40:17,025 DYSFUNCTIONING AND CONVEYING 4888 03:40:17,025 --> 03:40:21,964 SOMEBODY MAY BE -- MAY BE 4889 03:40:21,964 --> 03:40:25,000 PERFECTLY CAPABLE OF FUNCTIONING 4890 03:40:25,000 --> 03:40:27,202 IN ONE AREA AND HAS SIGNIFICANT 4891 03:40:27,202 --> 03:40:28,170 LIMITATIONS IN ANOTHER IS HARD 4892 03:40:28,170 --> 03:40:28,503 AND DIFFICULT. 4893 03:40:28,503 --> 03:40:32,074 I THINK WE HAVE A LONG WAYS TO 4894 03:40:32,074 --> 03:40:35,344 GO IN TERMS OF MAKING SURE OUR 4895 03:40:35,344 --> 03:40:39,781 JUDICIAL SYSTEM HAS A GRASP OR 4896 03:40:39,781 --> 03:40:40,382 FIRM INFORMATION OF AUTISM IN 4897 03:40:40,382 --> 03:40:47,723 THAT SENSE. 4898 03:40:47,723 --> 03:40:49,825 STRICT LIABILITY LAW. 4899 03:40:49,825 --> 03:40:54,429 THE PROSECUTION DOESN'T NEED TO 4900 03:40:54,429 --> 03:40:58,667 PROVE A DEFENDANT INTENDED TO DO 4901 03:40:58,667 --> 03:40:59,201 SOMETHING ILLEGAL OR WAS 4902 03:40:59,201 --> 03:41:00,502 RECKLESS OR NEGLECT. 4903 03:41:00,502 --> 03:41:02,704 IT'S ENOUGH FOR A CONVICTION TO 4904 03:41:02,704 --> 03:41:07,142 JUST PROVE THE ACT WAS COMMITTED 4905 03:41:07,142 --> 03:41:12,681 AND THAT THE DEFENDANT DID IT 4906 03:41:12,681 --> 03:41:15,284 WHICH IS DIFFICULT WHEN WE'RE 4907 03:41:15,284 --> 03:41:18,287 TRYING TO SAY, YES, BUT HERE'S 4908 03:41:18,287 --> 03:41:20,188 THE BACKGROUND THAT LED TO THAT 4909 03:41:20,188 --> 03:41:22,824 PERSON GETTING THERE. 4910 03:41:22,824 --> 03:41:25,327 THERE WAS SOME INFORMATION 4911 03:41:25,327 --> 03:41:30,565 MISSING, SOME EDUCATION THEY 4912 03:41:30,565 --> 03:41:34,703 NEVER RECEIVED AND I'LL GIVE YOU 4913 03:41:34,703 --> 03:41:36,538 AN EXAMPLE OF WHERE THAT COMES 4914 03:41:36,538 --> 03:41:39,241 IN AT THE AUTISM JUSTICE CENTER, 4915 03:41:39,241 --> 03:41:41,610 WE SEE THIS MOST IN CRIMINAL 4916 03:41:41,610 --> 03:41:42,544 CASES INVOLVING SEXUAL 4917 03:41:42,544 --> 03:41:46,114 INTERACTIONS ONLINE OR IN 4918 03:41:46,114 --> 03:41:46,515 PERSON. 4919 03:41:46,515 --> 03:41:49,017 SO FOR PEOPLE WHO HAVE TROUBLE 4920 03:41:49,017 --> 03:41:51,086 COMMUNICATING OR FORMING SOCIAL 4921 03:41:51,086 --> 03:41:52,387 BONDS JUST OUTSIDE IN THE 4922 03:41:52,387 --> 03:41:54,289 COMMUNITY, ONLINE ACTIVITIES CAN 4923 03:41:54,289 --> 03:41:55,657 BE ATTRACTIVE. 4924 03:41:55,657 --> 03:41:57,259 PEOPLE CAN SPEND EXCESSIVE 4925 03:41:57,259 --> 03:42:04,499 AMOUNT OF TIME ONLINE IF YOU'RE 4926 03:42:04,499 --> 03:42:15,010 IN CHAT ROOMS OR WHATEVER ONE 4927 03:42:16,878 --> 03:42:18,113 FEATURE COULD BE COLLECTING 4928 03:42:18,113 --> 03:42:21,149 THINGS AND IF YOU'RE COLLECTING 4929 03:42:21,149 --> 03:42:23,618 IMAGES WHETHER AND IT INVOLVES 4930 03:42:23,618 --> 03:42:25,721 UNDER AGE PEOPLE AND IF YOU HAVE 4931 03:42:25,721 --> 03:42:29,024 IT OR POSSESS IT YOU'RE LIABLE 4932 03:42:29,024 --> 03:42:32,627 FOR BREAKING STRICT LIABILITY 4933 03:42:32,627 --> 03:42:37,966 LAWS AROUND SEX FINANCE AND 4934 03:42:37,966 --> 03:42:48,210 EXPLOITATION. 4935 03:42:54,783 --> 03:42:56,451 I HEARD PEOPLE SAY THEY DIDN'T 4936 03:42:56,451 --> 03:42:58,787 KNOW IT CONTAINED THAT 4937 03:42:58,787 --> 03:43:00,522 INFORMATION OR THEY HAD 4938 03:43:00,522 --> 03:43:01,523 DIFFICULTY DISTINGUISHING AGES 4939 03:43:01,523 --> 03:43:03,091 OR FACES BECAUSE THAT'S NOT WHAT 4940 03:43:03,091 --> 03:43:04,226 THEY WERE LOOKING AT. 4941 03:43:04,226 --> 03:43:05,160 THEY WERE FOCUSSED ON A 4942 03:43:05,160 --> 03:43:09,931 PARTICULAR FEATURE. 4943 03:43:09,931 --> 03:43:12,634 WE'RE SEEING PEOPLE BEING 4944 03:43:12,634 --> 03:43:14,202 PROSECUTED AND QUITE HEAVILY. 4945 03:43:14,202 --> 03:43:16,038 WE'RE SEEING PEOPLE GET PLEA 4946 03:43:16,038 --> 03:43:19,141 DEALS SOMETIMES FOR FIVE YEARS, 4947 03:43:19,141 --> 03:43:20,509 SOMETIME FOR MORE. 4948 03:43:20,509 --> 03:43:21,977 A LOT OF THESE PARTICULAR STRICT 4949 03:43:21,977 --> 03:43:28,884 LIABILITY STATUTES COME WITH 30 4950 03:43:28,884 --> 03:43:30,419 YEARS IN PRISON, MAYBE A LIFE 4951 03:43:30,419 --> 03:43:33,021 TIME IN PRISON. 4952 03:43:33,021 --> 03:43:39,661 SIGNIFICANT. 4953 03:43:39,661 --> 03:43:42,464 IN ONE PARTICULAR CASE WE'RE 4954 03:43:42,464 --> 03:43:44,132 HELPING WITH THIS YOUNG PERSON 4955 03:43:44,132 --> 03:43:46,768 HAD JUST TURNED 18 OVER THE 4956 03:43:46,768 --> 03:43:50,439 SUMMER AND HAD FRIENDS WHO WERE 4957 03:43:50,439 --> 03:43:54,943 YOUNGER, THEY WERE GIRLS THEY 4958 03:43:54,943 --> 03:43:57,179 ENGAGED IN SEXUAL RELATIONSHIP. 4959 03:43:57,179 --> 03:44:00,515 THEY DID WHAT IS COMMON FOR A 4960 03:44:00,515 --> 03:44:03,251 LOT OF YOUNG PEOPLE TODAY 4961 03:44:03,251 --> 03:44:04,286 DISABILITY OR NO DISABILITY AND 4962 03:44:04,286 --> 03:44:06,521 DID A RECORDING ON THEIR PHONES, 4963 03:44:06,521 --> 03:44:09,291 TOOK PICTURES OF THEIR PHONES, 4964 03:44:09,291 --> 03:44:12,094 UPLOADED IT, IMAGES GOT SPREAD 4965 03:44:12,094 --> 03:44:12,994 AROUND THE COMMUNITY AND PARENTS 4966 03:44:12,994 --> 03:44:15,464 WERE SET AND CHARGES WERE 4967 03:44:15,464 --> 03:44:15,697 PRESSED. 4968 03:44:15,697 --> 03:44:19,167 THIS YOUNG AUTISTIC PERSON IS 4969 03:44:19,167 --> 03:44:20,669 STILL IN JAIL FACING SIGNIFICANT 4970 03:44:20,669 --> 03:44:21,803 CHARGES AS A RESULT OF THAT. 4971 03:44:21,803 --> 03:44:26,575 THE PROSECUTOR HAS SAID LIFE 4972 03:44:26,575 --> 03:44:28,243 IMPRISONMENT IS ON THE TABLE. 4973 03:44:28,243 --> 03:44:30,712 I'M RUNNING OUT OF TIME, I'M 4974 03:44:30,712 --> 03:44:34,483 LEARNING, BUT JUST TO GIVE YOU 4975 03:44:34,483 --> 03:44:36,685 AN IDEA, PART WHATEVER WE WANT 4976 03:44:36,685 --> 03:44:41,022 TO DO IS SOME TRAINING AND 4977 03:44:41,022 --> 03:44:44,860 EDUCATION FOR OUR JUDICIAL 4978 03:44:44,860 --> 03:44:47,696 SYSTEM AROUND THESE ISSUES 4979 03:44:47,696 --> 03:44:48,964 BECAUSE HAVE YOU STRICT 4980 03:44:48,964 --> 03:44:51,333 LIABILITY LAWS AND YOU HAVE THE 4981 03:44:51,333 --> 03:44:53,268 SOCIAL COMMUNICATION DEFICITS 4982 03:44:53,268 --> 03:44:55,137 AND VERY LONELY PEOPLE WHO MAY 4983 03:44:55,137 --> 03:44:57,305 BE MORE PRONE TO EXCESSIVE 4984 03:44:57,305 --> 03:45:00,509 ONLINE BEHAVIOR IS JUST A 4985 03:45:00,509 --> 03:45:03,945 PERFECT CONUNDRUM TO LEAD TO 4986 03:45:03,945 --> 03:45:05,046 SIGNIFICANT LEGAL, CRIMINAL 4987 03:45:05,046 --> 03:45:09,017 ENTANGLEMENTS AND WE HAVE TO DO 4988 03:45:09,017 --> 03:45:19,127 MORE. 4989 03:45:24,599 --> 03:45:25,700 >> Josh: NEXT WE HAVE LEIGH ANNE 4990 03:45:25,700 --> 03:45:27,369 McKINGSLEY AT THE ARC OF THE 4991 03:45:27,369 --> 03:45:30,639 UNITED STATES. 4992 03:45:30,639 --> 03:45:36,745 >> HELLO, EVERYONE. 4993 03:45:36,745 --> 03:45:40,382 LET'S SEE IF I CAN I WANT TO 4994 03:45:40,382 --> 03:45:41,449 MAKE SURE EVERYONE CAN HEAR ME 4995 03:45:41,449 --> 03:45:44,786 AND BEFORE I GET STARTED TO SAY 4996 03:45:44,786 --> 03:45:47,088 THANK YOU SO MUCH TO SUSAN FOR 4997 03:45:47,088 --> 03:45:48,823 INVITING US HERE AS WE HAVE THIS 4998 03:45:48,823 --> 03:45:50,926 IMPORTANT DISCUSSION AROUND 4999 03:45:50,926 --> 03:45:51,893 JUSTICE ISSUES. 5000 03:45:51,893 --> 03:45:54,062 IT'S INCREDIBLY IMPORTANT AND 5001 03:45:54,062 --> 03:45:56,164 OFTEN TIMES BEING IN THE FIELD 5002 03:45:56,164 --> 03:45:58,533 FOR A FEW YEARS NOW I NOTICED 5003 03:45:58,533 --> 03:46:00,969 SOMETIMES IT DOESN'T MAKE THE 5004 03:46:00,969 --> 03:46:03,738 CUT IN TERMS OF PRIORITY ISSUES 5005 03:46:03,738 --> 03:46:04,739 UNTIL THERE'S A CRISIS AND THEN 5006 03:46:04,739 --> 03:46:06,041 PEOPLE WANT TO TALK ABOUT IT. 5007 03:46:06,041 --> 03:46:08,343 SO THE GOAL I THINK WE'RE 5008 03:46:08,343 --> 03:46:10,278 BRINGING HERE TODAY AS A PANEL 5009 03:46:10,278 --> 03:46:12,681 TOO IS TO SAY WE NEED TO GET IN 5010 03:46:12,681 --> 03:46:14,482 FRONT OF THAT AND WE ALL ARE 5011 03:46:14,482 --> 03:46:15,717 WORKING TOGETHER TO DO THAT. 5012 03:46:15,717 --> 03:46:17,919 WE'RE SO EXCITED TO HAVE THE 5013 03:46:17,919 --> 03:46:19,154 OPPORTUNITY TO TALK TO YOU TODAY 5014 03:46:19,154 --> 03:46:19,788 ABOUT IT. 5015 03:46:19,788 --> 03:46:21,156 JUST A LITTLE BIT ABOUT MYSELF. 5016 03:46:21,156 --> 03:46:26,595 I STARTED WITH THE ARC OF THE 5017 03:46:26,595 --> 03:46:30,799 UNITED STATES 27 YEARS AGO 5018 03:46:30,799 --> 03:46:33,001 BECAUSE OF THE AMERICANS WITH 5019 03:46:33,001 --> 03:46:34,135 DISABILITIES ACT PASSED FOUR 5020 03:46:34,135 --> 03:46:36,404 YEARS PRIOR AND WE GOT A GRANT 5021 03:46:36,404 --> 03:46:38,873 THROUGH THE DEPARTMENT OF 5022 03:46:38,873 --> 03:46:39,941 JUSTICE TO CREATE MATERIALS FOR 5023 03:46:39,941 --> 03:46:41,843 LAW ENFORCEMENT, COURTS, PEOPLE 5024 03:46:41,843 --> 03:46:43,078 WITH INTELLECTUAL AND 5025 03:46:43,078 --> 03:46:44,145 DEVELOPMENT DISABILITIES ON THIS 5026 03:46:44,145 --> 03:46:48,917 VERY TOPIC. 5027 03:46:48,917 --> 03:46:53,588 I LEARN ED HOW MANY PEOPLE WITH 5028 03:46:53,588 --> 03:46:54,489 DEVELOPMENT DISABILITY WERE 5029 03:46:54,489 --> 03:46:55,123 BEING EXECUTED. 5030 03:46:55,123 --> 03:46:56,791 I COULD NOT BELIEVE WHAT I FOUND 5031 03:46:56,791 --> 03:46:57,092 OUT. 5032 03:46:57,092 --> 03:46:58,493 I MET WITH ADVOCATES AND NOT 5033 03:46:58,493 --> 03:47:03,665 MANY THROUGHOUT THE COUNTRY 5034 03:47:03,665 --> 03:47:06,201 DOING THIS WORK AND THOUGHT 5035 03:47:06,201 --> 03:47:09,004 NOBODY KNOWS THIS AND YOU CANNOT 5036 03:47:09,004 --> 03:47:19,214 UNSEE THAT. 5037 03:47:20,649 --> 03:47:21,650 I REALIZED THERE'S SO MUCH 5038 03:47:21,650 --> 03:47:25,020 PEOPLE DON'T UNDERSTAND ABOUT 5039 03:47:25,020 --> 03:47:27,822 THIS POPULATION, WHETHER IT'S 5040 03:47:27,822 --> 03:47:29,858 AUTISM, FETAL ALCOHOL SPECTRUM 5041 03:47:29,858 --> 03:47:34,796 DISORDER OR DEVELOPMENT 5042 03:47:34,796 --> 03:47:45,340 DISABILITIES, WE HAVE TO THAT'S 5043 03:47:48,810 --> 03:47:51,046 WHY WE STARTED THE CENTER AND 5044 03:47:51,046 --> 03:47:52,280 CAN'T STOP ADVOCATING. 5045 03:47:52,280 --> 03:47:57,852 ONE PICTURE IS OF ETHAN SAYLOR 5046 03:47:57,852 --> 03:48:00,989 WHEN WE STARTED 10 YEARS AGO AND 5047 03:48:00,989 --> 03:48:03,658 HE WAS A PERSON WITH DOWN 5048 03:48:03,658 --> 03:48:05,427 SYNDROME WHO DIED WHEN HE WANTED 5049 03:48:05,427 --> 03:48:09,964 TO SEE A SECOND SHOWING OF A 5050 03:48:09,964 --> 03:48:10,465 MOVIE. 5051 03:48:10,465 --> 03:48:12,000 HE WENT WITHOUT A TICKET BACK IN 5052 03:48:12,000 --> 03:48:15,303 THE MOVIE THEATRE AND THERE WAS 5053 03:48:15,303 --> 03:48:18,707 OFF-DUTY POLICE THERE AND THEY 5054 03:48:18,707 --> 03:48:21,009 WERE CALLED OVER AND ENDED UP 5055 03:48:21,009 --> 03:48:25,280 TAKING HIM DOWN AND DIED DUE TO 5056 03:48:25,280 --> 03:48:26,414 ASPHYXIATION AND HIS MOTHER 5057 03:48:26,414 --> 03:48:29,851 BEGAN A CRUSADE TO MAKE SURE 5058 03:48:29,851 --> 03:48:30,518 EVERYONE UNDERSTOOD WHAT 5059 03:48:30,518 --> 03:48:32,921 HAPPENED TO HER SON, ETHAN, AND 5060 03:48:32,921 --> 03:48:40,562 IT DID NOT HAPPEN AGAIN. 5061 03:48:40,562 --> 03:48:43,698 AND WE WENT TO MARYLAND TO 5062 03:48:43,698 --> 03:48:44,933 PROVIDE POLICE TRAINING AND 5063 03:48:44,933 --> 03:48:47,369 THAT -- THE REASON I BRING UP 5064 03:48:47,369 --> 03:48:52,340 HIS STORY IS IN 2020 ANOTHER 5065 03:48:52,340 --> 03:48:53,041 SIMILAR SITUATION HAPPENED WITH 5066 03:48:53,041 --> 03:48:54,242 ERIC PARSA YOU SEE ON THE SCREEN 5067 03:48:54,242 --> 03:48:57,379 AND HIS MOTHER WITH HIM. 5068 03:48:57,379 --> 03:49:01,449 THIS WAS PARTICULARLY 5069 03:49:01,449 --> 03:49:04,085 HEARTBREAKING BECAUSE HE DIED 5070 03:49:04,085 --> 03:49:06,488 WITH HIS MOTHER HOLDING HIS HAND 5071 03:49:06,488 --> 03:49:07,288 WITH POLICE THERE. 5072 03:49:07,288 --> 03:49:10,825 ALSO HE DIED FOR THE SAME 5073 03:49:10,825 --> 03:49:16,030 REASONS WHEN HE WAS HELD TOO 5074 03:49:16,030 --> 03:49:16,231 LONG. 5075 03:49:16,231 --> 03:49:17,866 THERE WAS A LAWSUIT AND NOW THAT 5076 03:49:17,866 --> 03:49:19,768 THE LAWSUIT IS DONE THEY'RE ABLE 5077 03:49:19,768 --> 03:49:21,035 TO SPEAK OUT ABOUT THIS AND THIS 5078 03:49:21,035 --> 03:49:25,240 FAMILY IS AN AMAZING FAMILY THAT 5079 03:49:25,240 --> 03:49:28,376 I GOT TO MEET JUST LAST -- AT 5080 03:49:28,376 --> 03:49:29,043 OUR LAST CONVENTION IN NEW 5081 03:49:29,043 --> 03:49:33,515 ORLEANS. 5082 03:49:33,515 --> 03:49:36,885 SPEAK WITH THEM AT LENGTH OF 5083 03:49:36,885 --> 03:49:38,920 WHAT THEY'RE EXPERIENCE HAS BEEN 5084 03:49:38,920 --> 03:49:40,889 AND HOW THEY TRIED TO DO 5085 03:49:40,889 --> 03:49:43,391 EVERYTHING RIGHT AND A FEW 5086 03:49:43,391 --> 03:49:44,159 MONTHS BEFORE THIS INCIDENT 5087 03:49:44,159 --> 03:49:46,094 THERE WAS AN ENCOUNTER WITH 5088 03:49:46,094 --> 03:49:47,495 POLICE THAT WENT GREAT. 5089 03:49:47,495 --> 03:49:48,730 WHAT'S THE ISSUE? 5090 03:49:48,730 --> 03:49:50,298 WHY CAN'T IT BE CONSISTENT? 5091 03:49:50,298 --> 03:49:52,133 WHAT'S GOING ON? 5092 03:49:52,133 --> 03:49:54,135 WHAT DO WE NEED TO LEARN FROM 5093 03:49:54,135 --> 03:49:55,336 ERIC'S STORY? 5094 03:49:55,336 --> 03:49:56,671 AND THEY'RE BOUND AND DETERMINED 5095 03:49:56,671 --> 03:49:59,441 WE LEARN FROM THIS AND ERIC IS 5096 03:49:59,441 --> 03:50:00,475 HONORED THROUGH THE SITUATION. 5097 03:50:00,475 --> 03:50:02,377 I KNOW SHE'S LISTENING TODAY SO 5098 03:50:02,377 --> 03:50:05,013 I WANT TO SAY THANK YOU SO MUCH 5099 03:50:05,013 --> 03:50:06,214 TO DARREN AND DONNA FOR SHARING 5100 03:50:06,214 --> 03:50:13,087 THEIR STORY WITH US. 5101 03:50:13,087 --> 03:50:15,323 YOU HEARD SOME OF THE 5102 03:50:15,323 --> 03:50:15,623 STATISTICS. 5103 03:50:15,623 --> 03:50:19,694 I ALWAYS WANT TO START WITH THE 5104 03:50:19,694 --> 03:50:21,763 STORIES BECAUSE THAT'S WHAT 5105 03:50:21,763 --> 03:50:22,897 MATTERS BUT STATISTICS GETS US 5106 03:50:22,897 --> 03:50:25,033 THE ATTENTION FOR THE GRANTS AND 5107 03:50:25,033 --> 03:50:26,167 MONEY TO SUPPORT THE ISSUE. 5108 03:50:26,167 --> 03:50:27,769 I WANT TO BRING TO YOUR 5109 03:50:27,769 --> 03:50:29,337 ATTENTION THAT WE DO HAVE DATA 5110 03:50:29,337 --> 03:50:32,073 FROM THE BUREAU OF JUSTICE 5111 03:50:32,073 --> 03:50:34,943 STATISTICS AND THAT IS THE DATA 5112 03:50:34,943 --> 03:50:37,011 ACTUALLY MONEY FROM THE BJA IS 5113 03:50:37,011 --> 03:50:44,419 WHAT ALLOWED US TO CREATE THE 5114 03:50:44,419 --> 03:50:48,022 INFO GRAPHICS AND 2 IN 10 5115 03:50:48,022 --> 03:50:51,626 PRISONERS AND 3 IN 10 JAIL 5116 03:50:51,626 --> 03:50:52,827 INMATES REPORTED HAVING A 5117 03:50:52,827 --> 03:50:53,495 COGNITIVE DISABILITY. 5118 03:50:53,495 --> 03:50:55,330 THAT'S THE MOST COMMON. 5119 03:50:55,330 --> 03:50:57,465 THEY LOOKED AT DIFFERENT TYPES 5120 03:50:57,465 --> 03:50:59,167 AND SAW COGNITIVE WAS THE MOST 5121 03:50:59,167 --> 03:50:59,601 COMMONLY REPORTED. 5122 03:50:59,601 --> 03:51:05,373 I WANTED TO BRING THAT OUT BUT 5123 03:51:05,373 --> 03:51:13,314 IF YOU LOOK AT CRIME VICTIMS THE 5124 03:51:13,314 --> 03:51:17,318 SAME THING IS TRUE. 5125 03:51:17,318 --> 03:51:20,989 AGAIN, THE BUREAU OF JUSTICE 5126 03:51:20,989 --> 03:51:22,657 STATISTICS LOOKS AT HOW PEOPLE 5127 03:51:22,657 --> 03:51:23,892 WITH COGNITIVE DISABILITIES ARE 5128 03:51:23,892 --> 03:51:26,961 VICTIMIZED AND FOUND THEY WERE 5129 03:51:26,961 --> 03:51:29,697 SEVEN TIMES MORE LIKELY TO 5130 03:51:29,697 --> 03:51:31,699 EXPERIENCE SEXUAL VIOLENCE. 5131 03:51:31,699 --> 03:51:33,601 WHETHER ON THE SUSPECT DEFEND 5132 03:51:33,601 --> 03:51:35,970 EPT OR VICTIM SIDE, COGNITIVE 5133 03:51:35,970 --> 03:51:37,672 DISABILITIES ARE MOST LIKELY TO 5134 03:51:37,672 --> 03:51:39,507 BE OVERREPRESENTED IN THE 5135 03:51:39,507 --> 03:51:39,741 SYSTEM. 5136 03:51:39,741 --> 03:51:41,776 SO WE CAN'T JUST SAY WE'RE GOING 5137 03:51:41,776 --> 03:51:43,878 TO LOOK AT IT FROM THIS ANGLE OR 5138 03:51:43,878 --> 03:51:46,147 THIS ANGLE AND UNFORTUNATELY 5139 03:51:46,147 --> 03:51:47,081 THAT'S HOW THE FOUNDING STREAMS 5140 03:51:47,081 --> 03:51:49,350 WORK AND WE'RE NOT ABLE TO BRING 5141 03:51:49,350 --> 03:51:51,853 THESE TOGETHER AND HOW ARE THESE 5142 03:51:51,853 --> 03:51:52,153 INTERACTING. 5143 03:51:52,153 --> 03:51:54,389 IT'S IMPORTANT WE THINK ABOUT 5144 03:51:54,389 --> 03:51:56,324 THAT WHEN WE'RE LOOKING AT 5145 03:51:56,324 --> 03:51:57,525 SOLUTIONS, POLICIES AND THAT 5146 03:51:57,525 --> 03:52:02,697 KIND OF THING. 5147 03:52:02,697 --> 03:52:04,832 SO BECAUSE THERE'S SO MANY 5148 03:52:04,832 --> 03:52:05,667 DIFFERENT DIVERSE ISSUES AROUND 5149 03:52:05,667 --> 03:52:09,537 THIS, THE ARC STARTED THE 5150 03:52:09,537 --> 03:52:11,873 NATIONAL CENTER ON CRIMINAL 5151 03:52:11,873 --> 03:52:13,007 JUSTICE AND DISABILITY 10 YEARS 5152 03:52:13,007 --> 03:52:14,442 AGO AND THANK YOU TO THE BUREAU 5153 03:52:14,442 --> 03:52:17,345 OF JUSTICE ASSISTANCE, BJA FOR 5154 03:52:17,345 --> 03:52:19,347 HELPING CREATE THE SEED MONEY TO 5155 03:52:19,347 --> 03:52:21,883 HELP START THE CENTER AND 5156 03:52:21,883 --> 03:52:22,617 PROVIDE TRAINING BUT NOT 5157 03:52:22,617 --> 03:52:24,953 TRAINING THAT JUST DOES A 5158 03:52:24,953 --> 03:52:26,955 ONE-OFF TRAINING BUT CREATES 5159 03:52:26,955 --> 03:52:27,789 COMMUNITY-BASED SOLUTIONS AND 5160 03:52:27,789 --> 03:52:28,756 I'LL SAY A LITTLE BIT MORE ABOUT 5161 03:52:28,756 --> 03:52:29,591 THAT IN A SECOND. 5162 03:52:29,591 --> 03:52:31,859 THIS IS WHAT WE'VE BEEN WORK ON 5163 03:52:31,859 --> 03:52:34,529 IN THE PAST 10 YEARS TO PROVIDE 5164 03:52:34,529 --> 03:52:36,965 TRAINING AND TECHNICAL 5165 03:52:36,965 --> 03:52:39,300 ASSISTANCE, INFORMATION 5166 03:52:39,300 --> 03:52:40,001 REFERRAL. 5167 03:52:40,001 --> 03:52:40,768 WE PROVIDE NATIONWIDE 5168 03:52:40,768 --> 03:52:41,336 INFORMATION REFERRAL. 5169 03:52:41,336 --> 03:52:43,771 IF IT'S A PERSON WHO'S AN 5170 03:52:43,771 --> 03:52:45,840 ATTORNEY OR DISABILITY OR FAMILY 5171 03:52:45,840 --> 03:52:48,676 MEMBERS, LOOKING FOR SUPPORT OR 5172 03:52:48,676 --> 03:52:50,011 ASSISTANCE, WE PROVIDE THAT AND 5173 03:52:50,011 --> 03:52:53,314 I WILL JUST MENTION THAT MANY OF 5174 03:52:53,314 --> 03:52:55,783 OUR CALLS AS WELL CARLEAN WAS 5175 03:52:55,783 --> 03:52:58,086 TALKING ABOUT DEALS WITH SEXUAL 5176 03:52:58,086 --> 03:52:58,319 OFFENSE. 5177 03:52:58,319 --> 03:52:59,320 THAT'S BEEN SINCE I'VE BEEN AT 5178 03:52:59,320 --> 03:52:59,954 THE ARC. 5179 03:52:59,954 --> 03:53:01,489 WE GET SO MANY CALLS AROUND 5180 03:53:01,489 --> 03:53:01,689 THAT. 5181 03:53:01,689 --> 03:53:03,558 THERE'S MANY MANY ISSUES I'D 5182 03:53:03,558 --> 03:53:06,060 LIKE TO UNPACK WITH YOU THAT 5183 03:53:06,060 --> 03:53:08,229 WOULD TAKE TOO LONG TO GO INTO 5184 03:53:08,229 --> 03:53:09,564 THAT DISCUSSION BUT PLEASE KNOW 5185 03:53:09,564 --> 03:53:11,633 THAT'S A HUGE NEED OUT THERE IN 5186 03:53:11,633 --> 03:53:13,001 THE COMMUNITY THAT WE CONTINUE 5187 03:53:13,001 --> 03:53:18,473 TO TRY TO ADDRESS. 5188 03:53:18,473 --> 03:53:19,040 AND RESOURCE COLLECTION AND 5189 03:53:19,040 --> 03:53:24,078 EDUCATION. 5190 03:53:24,078 --> 03:53:29,651 AND DISABILITY HAS TO BE KEY AT 5191 03:53:29,651 --> 03:53:31,986 EVERY CONVERSATION AROUND THIS 5192 03:53:31,986 --> 03:53:33,554 ISSUE AND WE HAVE YOUNG PEOPLE 5193 03:53:33,554 --> 03:53:37,458 WITH DISABILITIES ARE 13% MORE 5194 03:53:37,458 --> 03:53:38,359 LIKELY TO BE ARRESTED FROM THEIR 5195 03:53:38,359 --> 03:53:42,263 PEERS AND IF YOU LOOK AT BLACK 5196 03:53:42,263 --> 03:53:45,600 YOUTH, THAT FIGURE JUMPS TO 17%. 5197 03:53:45,600 --> 03:53:51,539 AND PEOPLE WITH DISABILITIES 5198 03:53:51,539 --> 03:53:56,177 OVER ALL HAVE A 43% CHANCE OF 5199 03:53:56,177 --> 03:53:58,112 ARREST AND DISPROPORTIONATE 5200 03:53:58,112 --> 03:53:59,514 AMOUNTS FALL ON YOUNG BLACK MEN. 5201 03:53:59,514 --> 03:54:01,883 WE CAN'T HAVE THE CONVERSATION 5202 03:54:01,883 --> 03:54:04,085 WITHOUT CENTERING THE ISSUES AND 5203 03:54:04,085 --> 03:54:06,287 WHAT WE'RE THINKING ABOUT WHEN 5204 03:54:06,287 --> 03:54:08,990 POLICY, TRAINING, WHATEVER IT IS 5205 03:54:08,990 --> 03:54:10,058 THAT HAS TO BE KEY. 5206 03:54:10,058 --> 03:54:14,829 -- HAS TO BE KEY. 5207 03:54:14,829 --> 03:54:22,203 I MENTION THE DATA FROM BJS AND 5208 03:54:22,203 --> 03:54:25,740 THE STORY OF JAMES METERS A 5209 03:54:25,740 --> 03:54:27,975 SURVIVOR OF SEXUAL VIOLENCE. 5210 03:54:27,975 --> 03:54:31,145 HE TOLD ME SEVEN DIFFERENT 5211 03:54:31,145 --> 03:54:37,819 INCIDENTS OF SEXUAL RELATED 5212 03:54:37,819 --> 03:54:39,253 VIOLENCE THROUGHOUT HIS LIFE. 5213 03:54:39,253 --> 03:54:41,289 WE KNOW IT'S HIGHLY COMMON FOR 5214 03:54:41,289 --> 03:54:42,924 PEOPLE WITH INTELLECTUAL 5215 03:54:42,924 --> 03:54:43,658 DEVELOPMENT DISABILITIES 5216 03:54:43,658 --> 03:54:45,259 INCLUDING AUTISM TO HAVE SOME 5217 03:54:45,259 --> 03:54:45,960 TYPE OF SEXUAL VIOLENCE IN THEIR 5218 03:54:45,960 --> 03:54:51,199 LIVES. 5219 03:54:51,199 --> 03:54:53,735 I MET JAMES WHEN I STARTED AT 24 5220 03:54:53,735 --> 03:54:55,870 AND WAS ON THE BOARD OF 5221 03:54:55,870 --> 03:54:57,572 DIRECTORS AND FOUND OUT WE BOTH 5222 03:54:57,572 --> 03:54:59,807 HAD SEXUAL ASSAULT IN OUR 5223 03:54:59,807 --> 03:55:00,108 BACKGROUND. 5224 03:55:00,108 --> 03:55:03,511 WE STARTED TALKING ABOUT HOW IN 5225 03:55:03,511 --> 03:55:05,747 THE WORLD IS THE ARC NOT TALKING 5226 03:55:05,747 --> 03:55:07,148 ABOUT THIS, ARE OTHER PEOPLE NOT 5227 03:55:07,148 --> 03:55:08,483 TALKING ABOUT THIS IF WE KNOW 5228 03:55:08,483 --> 03:55:09,751 THIS IS COMMON. 5229 03:55:09,751 --> 03:55:12,487 YOU KNOW, WE DIDN'T HAVE TE DATA 5230 03:55:12,487 --> 03:55:12,653 YET. 5231 03:55:12,653 --> 03:55:15,490 IT WASN'T UNTIL LATER WE GOT THE 5232 03:55:15,490 --> 03:55:20,995 CATEGORY OF DISABILITY ADDED TO 5233 03:55:20,995 --> 03:55:26,601 THE NATIONAL CRIME VICTIM DATA 5234 03:55:26,601 --> 03:55:28,636 AND AS A SURVIVOR I KNEW IT WAS 5235 03:55:28,636 --> 03:55:29,403 AN ISSUE BECAUSE I KNEW THE 5236 03:55:29,403 --> 03:55:29,904 NUMBERS IN THE GENERAL 5237 03:55:29,904 --> 03:55:33,574 POPULATION. 5238 03:55:33,574 --> 03:55:36,310 IF IT'S HAPPENING IN THE 5239 03:55:36,310 --> 03:55:39,113 DISABILITY COMMUNITY WE HAVE TO 5240 03:55:39,113 --> 03:55:39,714 RAISE AWARENESS. 5241 03:55:39,714 --> 03:55:43,651 HIS STORY IS AN AMAZING ONE HE'S 5242 03:55:43,651 --> 03:55:45,553 GONE THROUGH SO MANY DIFFERENT 5243 03:55:45,553 --> 03:55:48,089 SEASONS IN HIS LIFE BUT KNOWING 5244 03:55:48,089 --> 03:55:49,223 ONE OF THE THINGS HE REALLY 5245 03:55:49,223 --> 03:55:51,659 WANTED TO DO IS TALK ABOUT THE 5246 03:55:51,659 --> 03:55:51,926 ISSUE. 5247 03:55:51,926 --> 03:55:54,495 HE RAISED AWARENESS THROUGHOUT 5248 03:55:54,495 --> 03:56:03,037 THE COUNTRY OF CRIME VICTIMS AND 5249 03:56:03,037 --> 03:56:09,577 I ALWAYS WANT TO MENTION HIS 5250 03:56:09,577 --> 03:56:19,987 STORY AND THERE'S INITIATIVES 5251 03:56:19,987 --> 03:56:21,222 THE CENTER HAS BEEN WORKING ON. 5252 03:56:21,222 --> 03:56:23,357 WE CURRENTLY HAVE THE GRANT WE 5253 03:56:23,357 --> 03:56:25,593 WERE JUST AWARDED THROUGH THE 5254 03:56:25,593 --> 03:56:26,928 COPS OFFICE THAT'S THE COMMUNITY 5255 03:56:26,928 --> 03:56:31,566 ORIENTED POLICING SERVICES. 5256 03:56:31,566 --> 03:56:35,536 AND THEY FOCUS ON COMMUNITY 5257 03:56:35,536 --> 03:56:37,004 POLICING WITHIN THE LAW 5258 03:56:37,004 --> 03:56:38,940 ENFORCEMENT AND CREATING WHAT'S 5259 03:56:38,940 --> 03:56:45,413 CALLED JUST POLICING ONLINE AS 5260 03:56:45,413 --> 03:56:55,957 WELL AS IN PERSON TRAINING AND 5261 03:57:02,964 --> 03:57:03,798 THE UNIVERSITY OF CINCINNATI AS 5262 03:57:03,798 --> 03:57:04,999 WELL AS THE SOUTH FLORIDA AND 5263 03:57:04,999 --> 03:57:10,972 WE'RE LOOKING AT HOW TO INCREASE 5264 03:57:10,972 --> 03:57:14,175 THE ACCESS TO VICTIMS 5265 03:57:14,175 --> 03:57:15,576 SPECIFICALLY LOOKING AT ALL 5266 03:57:15,576 --> 03:57:17,011 TYPES OF VICTIMIZATION. 5267 03:57:17,011 --> 03:57:18,412 I WON'T GO THROUGH ALL THOSE BUT 5268 03:57:18,412 --> 03:57:19,947 IF YOU HAVE ANY QUESTIONS ABOUT 5269 03:57:19,947 --> 03:57:25,386 THE OTHER PROJECTS WE'RE WORKING 5270 03:57:25,386 --> 03:57:28,389 ON, I KNOW AND THERE'S PROJECTS 5271 03:57:28,389 --> 03:57:29,991 WE'RE WORKING ON TOGETHER. 5272 03:57:29,991 --> 03:57:31,826 I WILL MENTION EARLIER YOU ALL 5273 03:57:31,826 --> 03:57:39,634 WERE TALKING ABOUT THE NEED FOR 5274 03:57:39,634 --> 03:57:41,636 LOOKING AT INTERNATIONAL 5275 03:57:41,636 --> 03:57:45,006 RESEARCH AND PROVIDED MONEY AND 5276 03:57:45,006 --> 03:57:50,111 OVER THE PAST SEVEN YEARS AND 5277 03:57:50,111 --> 03:57:51,846 HOW TO LEARN FROM EACH OTHER AND 5278 03:57:51,846 --> 03:57:53,814 THAT'S IMPORTANT WHEN YOU FIND A 5279 03:57:53,814 --> 03:57:56,984 LACK OF RESEARCH AND SOLIDARITY 5280 03:57:56,984 --> 03:57:59,153 AROUND THESE ISSUES IN YOUR OWN 5281 03:57:59,153 --> 03:57:59,520 COUNTRY. 5282 03:57:59,520 --> 03:58:00,488 WE'VE BEEN BUILDING WAYS TO 5283 03:58:00,488 --> 03:58:01,122 LEARN FROM EACH OTHER IN THAT 5284 03:58:01,122 --> 03:58:07,561 WAY. 5285 03:58:07,561 --> 03:58:09,196 AND WHEN WE START THE NATIONAL 5286 03:58:09,196 --> 03:58:10,731 CENTER, THIS WAS THE KEY 5287 03:58:10,731 --> 03:58:13,000 TRAINING THAT WE CREATED CALLED 5288 03:58:13,000 --> 03:58:17,371 PATHWAYS TO JUSTICE. 5289 03:58:17,371 --> 03:58:20,274 THIS IS A ONE-DAY TRAINING THAT 5290 03:58:20,274 --> 03:58:22,143 INVOLVES LAW ENFORCEMENT, 5291 03:58:22,143 --> 03:58:26,414 ATTORNEYS, VICTIM SERVICE S AND 5292 03:58:26,414 --> 03:58:28,282 DISABILITIES ADVOCATES. 5293 03:58:28,282 --> 03:58:31,619 WHAT'S DIFFERENT IS WE HAVE SET 5294 03:58:31,619 --> 03:58:33,621 OUT WAY TO ENSURE THE ENTIRE 5295 03:58:33,621 --> 03:58:36,991 COMMUNITY THAT IS INVOLVED IN 5296 03:58:36,991 --> 03:58:38,225 THIS WILL HELP CO-TRAIN AND 5297 03:58:38,225 --> 03:58:41,629 CREATE A PLAN MOVING FORWARD. 5298 03:58:41,629 --> 03:58:43,097 SO WE HEARD TODAY IT'S IMPORTANT 5299 03:58:43,097 --> 03:58:45,299 TO NOT JUST THINK ABOUT THIS AS 5300 03:58:45,299 --> 03:58:47,735 TRAINING BUT HOW DO WE BUILD THE 5301 03:58:47,735 --> 03:58:48,903 LONG-TERM APPROACH. 5302 03:58:48,903 --> 03:58:51,605 WE CREATED WHAT'S CALLED 5303 03:58:51,605 --> 03:58:52,974 DISABILITY RESPONSE TEAMS NUMBER 5304 03:58:52,974 --> 03:58:53,374 ONE. 5305 03:58:53,374 --> 03:58:58,512 AND WE HAVE TO HAVE AT LEAST THE 5306 03:58:58,512 --> 03:59:00,581 FOLKS ON THE TEAM AND WHAT IS IT 5307 03:59:00,581 --> 03:59:01,882 IN YOUR COMMUNITY MOST NEEDED. 5308 03:59:01,882 --> 03:59:03,718 WHAT DO YOU HAVE ACCESS TO? 5309 03:59:03,718 --> 03:59:14,095 WHAT DATA DO YOU HAVE? 5310 03:59:15,029 --> 03:59:18,265 WHERE IS IT YOU CAN MAKE A 5311 03:59:18,265 --> 03:59:21,002 DIFFERENCE AND NOTHING ABOUT US 5312 03:59:21,002 --> 03:59:23,804 WITHOUT US AND RELATIONSHIP 5313 03:59:23,804 --> 03:59:25,039 TEAMS AND WE'RE TALKING TO 5314 03:59:25,039 --> 03:59:27,608 DIFFERENT UNIVERSITIES NOW TO 5315 03:59:27,608 --> 03:59:31,912 START DOING MORE THOROUGH 5316 03:59:31,912 --> 03:59:34,515 INVESTIGATIONS AND EVALUATION 5317 03:59:34,515 --> 03:59:35,649 AND OF THESE TEAMS SAYING IF WE 5318 03:59:35,649 --> 03:59:38,119 PUT TEAMS IN PLACE, HOW CAN THEY 5319 03:59:38,119 --> 03:59:39,453 REALLY MAKE A DIFFERENCE 5320 03:59:39,453 --> 03:59:47,261 LONG-TERM IN THESE COMMUNITIES. 5321 03:59:47,261 --> 03:59:50,931 AND IF YOU EVER HEARD OF THE 5322 03:59:50,931 --> 03:59:55,269 SEQUENTIAL INTERCEPT MAPPING WE 5323 03:59:55,269 --> 03:59:56,370 OVERLAYS INTELLECTUAL 5324 03:59:56,370 --> 03:59:57,238 DEVELOPMENT DISABILITY AND THIS 5325 03:59:57,238 --> 03:59:59,407 IS A GREAT TOOL WHEN YOU THINK 5326 03:59:59,407 --> 04:00:01,342 OF AS A COMMUNITY OR POLICY 5327 04:00:01,342 --> 04:00:03,010 DEVELOPMENT, IT GOES THROUGH THE 5328 04:00:03,010 --> 04:00:08,983 ENTIRE CRIMINAL JUSTICE SYSTEM 5329 04:00:08,983 --> 04:00:10,284 A 5330 04:00:10,284 --> 04:00:15,656 AND ARE WE PROVIDING 5331 04:00:15,656 --> 04:00:20,995 ACCOMMODAT 5332 04:00:20,995 --> 04:00:23,264 ACCOMMODATIONS AND WE CAN'T JUST 5333 04:00:23,264 --> 04:00:24,198 INVOLVE LAW ENFORCEMENT AND 5334 04:00:24,198 --> 04:00:25,199 THINK THAT'S IT. 5335 04:00:25,199 --> 04:00:26,700 WE HAVE TO INVOLVE EVERYONE WHO 5336 04:00:26,700 --> 04:00:29,670 COMES IN CONTACT WITH SOMEONE 5337 04:00:29,670 --> 04:00:32,973 WITH AUTISM OR DEVELOPMENT 5338 04:00:32,973 --> 04:00:33,307 DISABILITIES. 5339 04:00:33,307 --> 04:00:35,076 THIS IS WHERE WE HAVE PATHWAYS 5340 04:00:35,076 --> 04:00:43,084 SO FAR. 5341 04:00:43,084 --> 04:00:45,653 WE'VE BEEN TALKING WITH SOUTH 5342 04:00:45,653 --> 04:00:47,054 YEAR AND BRINGING MORE TRAINING 5343 04:00:47,054 --> 04:00:49,690 IN THEIR COUNTRY. 5344 04:00:49,690 --> 04:00:51,258 WE SEE DESIRE FOR THIS NOT JUST 5345 04:00:51,258 --> 04:00:51,859 IN OUR COUNTRY BUT OTHERS AS 5346 04:00:51,859 --> 04:00:54,595 WELL. 5347 04:00:54,595 --> 04:00:58,099 HERE'S SOME OF THE RESOURCES 5348 04:00:58,099 --> 04:00:59,066 THAT WE'LL PROVIDE THROUGH THIS 5349 04:00:59,066 --> 04:01:01,001 TO SUSAN FOR YOU TO TAKE A LOOK 5350 04:01:01,001 --> 04:01:03,037 AT LATER ON. 5351 04:01:03,037 --> 04:01:04,672 SOME OF THE THINGS I MENTIONED 5352 04:01:04,672 --> 04:01:09,009 TODAY PLUS, WE HAD A VIDEO COME 5353 04:01:09,009 --> 04:01:11,145 OUT ON DISABILITY RIGHTS AND 5354 04:01:11,145 --> 04:01:11,545 CRIMINAL JUSTICE. 5355 04:01:11,545 --> 04:01:14,381 IT'S A SHORT VIDEO AND YOU CAN 5356 04:01:14,381 --> 04:01:15,649 LOOK AT IT AND SHARE IT WITH 5357 04:01:15,649 --> 04:01:16,984 OTHERS WHO MAY BE INTERESTED. 5358 04:01:16,984 --> 04:01:19,954 I WANTED TO MENTION TOO WE HAVE 5359 04:01:19,954 --> 04:01:21,822 STAFF THAT AREN'T HERE TODAY BUT 5360 04:01:21,822 --> 04:01:24,992 JOSH BRANCH IS AN ATTORNEY AND 5361 04:01:24,992 --> 04:01:27,661 JESSICA OPPENHEIM WHO WORKED AT 5362 04:01:27,661 --> 04:01:31,165 OUR NATIONAL CENTER AND HAVE A 5363 04:01:31,165 --> 04:01:33,667 LINK TO PATHWAYS TO JUSTICE AS 5364 04:01:33,667 --> 04:01:36,270 WELL AND THANK YOU SO MUCH AND 5365 04:01:36,270 --> 04:01:38,239 I'LL PASS IT ON. 5366 04:01:38,239 --> 04:01:47,348 >> WE HAVE BROOK MOUNT AND KELLY 5367 04:01:47,348 --> 04:01:57,458 BURKE. 5368 04:02:54,548 --> 04:02:56,217 BJA IS LOCATED WITHIN THE OFFICE 5369 04:02:56,217 --> 04:02:57,952 OF JUSTICE PROGRAMS ONE OF THREE 5370 04:02:57,952 --> 04:03:00,988 GRANT MAKING COMPONENTS WITH 5371 04:03:00,988 --> 04:03:02,823 DOJ. 5372 04:03:02,823 --> 04:03:04,992 THE BUREAU OF JUSTICE ASSISTANCE 5373 04:03:04,992 --> 04:03:07,828 WAS CREATED IN 1984 TO REDUCE 5374 04:03:07,828 --> 04:03:08,796 CRIME, CREATE SAFER COMMUNITIES 5375 04:03:08,796 --> 04:03:13,000 AND REFORM OUR NATION'S CRIMINAL 5376 04:03:13,000 --> 04:03:18,505 JUSTICE SYSTEM. 5377 04:03:18,505 --> 04:03:20,407 WE HAVE PROGRAMS TRANSFERRING 5378 04:03:20,407 --> 04:03:21,075 KNOWLEDGE THROUGH TRAINING AND 5379 04:03:21,075 --> 04:03:22,710 TECHNICAL ASSISTANCE, DEVELOPING 5380 04:03:22,710 --> 04:03:24,979 GUIDANCE AND RESOURCES AND 5381 04:03:24,979 --> 04:03:29,016 ENGAGING WITH PARTNERS AND 5382 04:03:29,016 --> 04:03:31,652 STAKEHOLDERS ACROSS THE COUNTRY 5383 04:03:31,652 --> 04:03:34,321 TODAY YOU'LL HEAR ABOUT THE 5384 04:03:34,321 --> 04:03:38,259 INCREDIBLE WORK BJA HAS 5385 04:03:38,259 --> 04:03:39,193 BASKETBEEN 5386 04:03:39,193 --> 04:03:39,994 SUPPORTING WITH THE NATIONAL 5387 04:03:39,994 --> 04:03:40,961 ASSOCIATION OF CHIEFS OF POLICE 5388 04:03:40,961 --> 04:03:43,497 AND THE DEVELOPMENT OF TRAINING 5389 04:03:43,497 --> 04:03:48,702 AND RESOURCES TO RAISE AWARENESS 5390 04:03:48,702 --> 04:03:52,273 IN THE LAW ENFORCEMENT COMMUNITY 5391 04:03:52,273 --> 04:03:56,710 SUCH AS EVIDENCE-BASED BEST 5392 04:03:56,710 --> 04:03:58,012 PRACTICES WITH PEOPLE WITH 5393 04:03:58,012 --> 04:03:59,046 DEVELOPMENT AND INTELLECTUAL 5394 04:03:59,046 --> 04:04:00,147 DISABILITIES AND I'LL TURN IT 5395 04:04:00,147 --> 04:04:02,850 OVER TO KELLY BURKE TO GET IN 5396 04:04:02,850 --> 04:04:04,985 THE DETAILS REGARDING THESE 5397 04:04:04,985 --> 04:04:10,658 PROGRAMS BUT THANK YOU SO MUCH. 5398 04:04:10,658 --> 04:04:12,259 >> THANK YOU, BROOKE. 5399 04:04:12,259 --> 04:04:16,597 I'M KELLY BURKE WITH THE 5400 04:04:16,597 --> 04:04:17,231 INTERNATIONAL ASSOCIATION OF 5401 04:04:17,231 --> 04:04:19,800 CHIEFS OF POLICE FOR THOSE NOT 5402 04:04:19,800 --> 04:04:21,402 FAMILIAR WE'RE AGE INTERNATIONAL 5403 04:04:21,402 --> 04:04:26,240 NON-PROFIT MEMBERSHIP 5404 04:04:26,240 --> 04:04:29,443 ORGANIZATION MADE UP OF POLICE 5405 04:04:29,443 --> 04:04:31,545 PROFESSIONALS FROM AROUND THE 5406 04:04:31,545 --> 04:04:36,684 WORLD WE HAVE ABOUT 33,000 5407 04:04:36,684 --> 04:04:39,520 MEMBERS AND WE FOCUS ON 5408 04:04:39,520 --> 04:04:40,754 EDUCATION AND TRAINING AND 5409 04:04:40,754 --> 04:04:42,056 ADVOCACY AND ENGAGEMENT. 5410 04:04:42,056 --> 04:04:46,794 ONE OF THE ASPECTS OF OUR WORK 5411 04:04:46,794 --> 04:04:49,663 IS WE HAVE GRANT FUNDED 5412 04:04:49,663 --> 04:04:51,732 INITIATIVES ON TO DEVELOP 5413 04:04:51,732 --> 04:04:53,434 TRAINING AND RESOURCES FOR LAW 5414 04:04:53,434 --> 04:04:54,401 ENFORCEMENT AND THEIR 5415 04:04:54,401 --> 04:04:59,540 MULTI-DISCIPLINARY PARTNERS ON A 5416 04:04:59,540 --> 04:05:02,810 NUMBER OF ISSUES. 5417 04:05:02,810 --> 04:05:04,311 THE FIRST ONE I'M GOING TO TALK 5418 04:05:04,311 --> 04:05:06,780 ABOUT IS THE ACADEMIC TRAINING 5419 04:05:06,780 --> 04:05:08,716 TO INFORM POLICE RESPONSES 5420 04:05:08,716 --> 04:05:11,819 INITIATIVE THAT IS A BJA FUNDED 5421 04:05:11,819 --> 04:05:13,787 INITIATIVE LED BY THE UNIVERSITY 5422 04:05:13,787 --> 04:05:15,622 OF CINCINNATI IN PARTNERSHIP 5423 04:05:15,622 --> 04:05:19,059 WITH IACP THE ARC OF THE UNITED 5424 04:05:19,059 --> 04:05:20,461 STATES, POLICY RESEARCH 5425 04:05:20,461 --> 04:05:22,730 ASSOCIATES AND THE NATIONAL 5426 04:05:22,730 --> 04:05:23,997 POLICING INSTITUTE. 5427 04:05:23,997 --> 04:05:25,432 THE ACADEMIC TRAINING INITIATIVE 5428 04:05:25,432 --> 04:05:29,036 STARTED IN 2020 TO PROVIDE 5429 04:05:29,036 --> 04:05:36,176 TRAINING AND ASSISTANCE TO 5430 04:05:36,176 --> 04:05:39,279 DEVELOP BEST PRACTICES IN 5431 04:05:39,279 --> 04:05:48,088 RESPONSE FOR PEOPLE WITH MENTAL 5432 04:05:48,088 --> 04:05:51,458 HEALTH CONDITIONS AND THIS 5433 04:05:51,458 --> 04:05:53,727 INITIATIVE LED THE DEVELOPMENT 5434 04:05:53,727 --> 04:06:03,203 OF A 40 HOUR CURRICULUM AND 5435 04:06:03,203 --> 04:06:04,571 TRAINING AND IT'S A TOOL KIT 5436 04:06:04,571 --> 04:06:06,039 I'LL GET TOO IN A MOMENT. 5437 04:06:06,039 --> 04:06:12,246 IT WAS DESIGNED TO PREPARE 5438 04:06:12,246 --> 04:06:13,981 OFFICERS TO RESPOND TO PEOPLE IN 5439 04:06:13,981 --> 04:06:14,214 CRISIS. 5440 04:06:14,214 --> 04:06:16,917 THE OVER ALL PHILOSOPHY FOR THE 5441 04:06:16,917 --> 04:06:20,320 CURRICULUM IS OFFICER SAFETY, 5442 04:06:20,320 --> 04:06:23,991 PUBLIC SAFETY AND DIVERSION FROM 5443 04:06:23,991 --> 04:06:25,492 THE CRIMINAL JUSTICE SYSTEM 5444 04:06:25,492 --> 04:06:35,803 WHENEVER POSSIBLE. 5445 04:06:36,670 --> 04:06:38,672 THE GOALS OF THE RESPONSE OF 5446 04:06:38,672 --> 04:06:39,873 INTERVENTION AND TOOL KIT ARE TO 5447 04:06:39,873 --> 04:06:41,742 EXPAND KNOWLEDGE OF MENTAL 5448 04:06:41,742 --> 04:06:44,445 HEALTH CONDITIONS, SUBSTANCE USE 5449 04:06:44,445 --> 04:06:47,514 DISORDERS AND DEVELOPMENT AND 5450 04:06:47,514 --> 04:06:48,749 INTELLECTUAL DISABILITIES AS 5451 04:06:48,749 --> 04:06:50,651 WELL AS TO CREATE CONNECTIONS 5452 04:06:50,651 --> 04:06:51,785 WICK PEOPLE WITH LIVED 5453 04:06:51,785 --> 04:06:54,354 EXPERIENCES ENHANCE AWARENESS OF 5454 04:06:54,354 --> 04:06:57,057 COMMUNITY SERVICES AND EMPHASIZE 5455 04:06:57,057 --> 04:06:58,959 THE DE-ESCALATION OF CRISIS 5456 04:06:58,959 --> 04:07:00,994 SITUATIONS WHILE SUPPORTING 5457 04:07:00,994 --> 04:07:03,530 OFFICER SAFETY AND WELLNESS. 5458 04:07:03,530 --> 04:07:09,002 THE CURRICULUM IS BASED ON THE 5459 04:07:09,002 --> 04:07:10,504 MODEL OF CRISIS INTERVENTION 5460 04:07:10,504 --> 04:07:12,039 TRAINING YOU MAY HAVE HEARD OF 5461 04:07:12,039 --> 04:07:13,540 CIT TRAINING THAT WAS DEVELOPED 5462 04:07:13,540 --> 04:07:17,010 OVER 30 YEARS AGO ACROSS THE 5463 04:07:17,010 --> 04:07:18,045 COUNTRY. 5464 04:07:18,045 --> 04:07:19,780 THIS CURRICULUM WAS BASED ON 5465 04:07:19,780 --> 04:07:27,354 THAT 40-HOUR CURRICULUM BUT IS 5466 04:07:27,354 --> 04:07:28,856 SIGNIFICANTLY MODIFIED TO 5467 04:07:28,856 --> 04:07:32,059 INCLUDE CONTENT THROUGHOUT THE 5468 04:07:32,059 --> 04:07:34,228 WHOLE 40 HOURS ON INDIVIDUALS 5469 04:07:34,228 --> 04:07:35,295 WITH INTELLECTUAL OR DEVELOPMENT 5470 04:07:35,295 --> 04:07:36,096 DISABILITIES. 5471 04:07:36,096 --> 04:07:38,599 I THINK IT'S IMPORTANT TO NOTE 5472 04:07:38,599 --> 04:07:41,001 THE CURRICULUM FOCUSES ON 5473 04:07:41,001 --> 04:07:43,670 BEHAVIOR AND NOT DIAGNOSES 5474 04:07:43,670 --> 04:07:45,005 SPECIFICALLY BEHAVIOR THAT 5475 04:07:45,005 --> 04:07:46,740 OFFICERS ENCOUNTER IN THE FIELD. 5476 04:07:46,740 --> 04:07:50,744 THERE'S A HEAVY PRACTICAL 5477 04:07:50,744 --> 04:07:56,183 COMPONENT OF ROLE PLAYING AND 5478 04:07:56,183 --> 04:08:02,122 DE-ESCALATION. 5479 04:08:02,122 --> 04:08:03,891 THE TRAINING AND TOOLS ARE 5480 04:08:03,891 --> 04:08:08,128 DESIGN TO COMPLIMENT THE 5481 04:08:08,128 --> 04:08:09,863 DEVELOPMENT AND IMPLEMENTATION 5482 04:08:09,863 --> 04:08:10,797 OF LOCAL CRISIS RESPONSE 5483 04:08:10,797 --> 04:08:14,368 PROGRAMS ON DEVELOPMENT AT THE 5484 04:08:14,368 --> 04:08:17,871 LOCAL LEVEL. 5485 04:08:17,871 --> 04:08:19,273 IT PREPARES OFFICERS TO 5486 04:08:19,273 --> 04:08:20,173 RECOGNIZE INDIVIDUALS 5487 04:08:20,173 --> 04:08:23,243 EXPERIENCING CRISIS RELATED TO 5488 04:08:23,243 --> 04:08:25,145 BEHAVIORAL HEALTH CONDITIONS OR 5489 04:08:25,145 --> 04:08:29,016 DEVELOPMENT OR INTELLECTUAL 5490 04:08:29,016 --> 04:08:33,820 DISABILITIES AND EMPLOYEE 5491 04:08:33,820 --> 04:08:34,855 PRACTICES INCLUDING 5492 04:08:34,855 --> 04:08:35,789 DE-ESCALATION TECHNIQUES AND 5493 04:08:35,789 --> 04:08:39,960 ACCESS LOCAL RESOURCES TO DIVERT 5494 04:08:39,960 --> 04:08:41,795 INDIVIDUALS AWAY FROM THE 5495 04:08:41,795 --> 04:08:44,531 CRIMINAL JUSTICE SYSTEM. 5496 04:08:44,531 --> 04:08:46,600 AND PREPARES OFFICERS TO ENHANCE 5497 04:08:46,600 --> 04:08:49,136 THE SAFETY OF THE INDIVIDUALS IN 5498 04:08:49,136 --> 04:08:49,636 CRISIS. 5499 04:08:49,636 --> 04:08:54,675 THE OFFICERS AS WELL AS 5500 04:08:54,675 --> 04:08:56,977 COMMUNITY MEMBERS THIS RESOURCE 5501 04:08:56,977 --> 04:08:59,246 WAS DEVELOPED BECAUSE TYPICALLY 5502 04:08:59,246 --> 04:09:01,014 CRISIS INTERVENTION TRAINING 5503 04:09:01,014 --> 04:09:03,283 DOES NOT INCLUDE ANY CONTENT OR 5504 04:09:03,283 --> 04:09:06,086 ONLY LIMITED CONTENT ON 5505 04:09:06,086 --> 04:09:09,222 INTELLECTUAL OR DEVELOPMENT 5506 04:09:09,222 --> 04:09:14,227 DISABILITIES. 5507 04:09:14,227 --> 04:09:15,896 SO THIS CURRICULUM IS UNIQUE 5508 04:09:15,896 --> 04:09:17,965 BECAUSE OF THAT ASPECT TO 5509 04:09:17,965 --> 04:09:19,733 PROVIDE THE CONTENT AND SKILLS 5510 04:09:19,733 --> 04:09:21,969 AND STRATEGIES THROUGHOUT THE 5511 04:09:21,969 --> 04:09:24,237 ENTIRE CURRICULUM FOR EFFECTIVE 5512 04:09:24,237 --> 04:09:24,638 POLICE RESPONSE. 5513 04:09:24,638 --> 04:09:28,542 IT EXPLORE PERCEPTIONS AND AD 5514 04:09:28,542 --> 04:09:33,947 ATTITUDES ON DISABILITIES, 5515 04:09:33,947 --> 04:09:38,485 DISABILITY CULTURE AND COMMUNITY 5516 04:09:38,485 --> 04:09:40,520 PROVIDERS CONTENT ON 5517 04:09:40,520 --> 04:09:41,355 CHARACTERISTICS OF DEVELOPMENT 5518 04:09:41,355 --> 04:09:44,992 DISABILITIES AND STRATEGIES FOR 5519 04:09:44,992 --> 04:09:45,993 RESPONDING MORE EFFECTIVELY AS A 5520 04:09:45,993 --> 04:09:48,528 POLICE OFFICER. 5521 04:09:48,528 --> 04:09:51,331 THE CURRICULUM ENCOURAGES THE 5522 04:09:51,331 --> 04:09:52,532 INCLUSION OF PEOPLE WITH 5523 04:09:52,532 --> 04:09:54,134 INTELLECTUAL AND DEVELOPMENT 5524 04:09:54,134 --> 04:09:55,035 DISABILITIES IN THE FAMILY AND 5525 04:09:55,035 --> 04:10:05,445 PEER PERSPECTIVES PANEL. 5526 04:10:29,636 --> 04:10:35,208 IT PROVIDES GUIDANCE AND 5527 04:10:35,208 --> 04:10:36,977 OPPORTUNITIES FOR OPPORTUNITIES 5528 04:10:36,977 --> 04:10:44,351 FOR INTERACTION AND DISABILITY 5529 04:10:44,351 --> 04:10:48,989 RIGHTS AS IT APPLIES TO LAW 5530 04:10:48,989 --> 04:10:50,390 ENFORCEMENT OFFICER 5531 04:10:50,390 --> 04:10:50,724 INTERACTIONS. 5532 04:10:50,724 --> 04:10:53,293 IT ENCOURAGING INCLUSION OF 5533 04:10:53,293 --> 04:10:55,262 REPRESENTATIVES FROM THE IDD 5534 04:10:55,262 --> 04:10:56,930 SERVICE SYSTEM TO DESCRIBE THEIR 5535 04:10:56,930 --> 04:11:02,269 SERVICES TO THE LOCAL OFFICERS 5536 04:11:02,269 --> 04:11:07,674 AND WHAT IS AVAILABLE AND 5537 04:11:07,674 --> 04:11:08,709 SPECIFIC DE-ESCALATION SKILLS 5538 04:11:08,709 --> 04:11:11,344 AND ROLE PLAYING SCENARIOS FOR 5539 04:11:11,344 --> 04:11:21,221 RESPONDING TO PEOPLE WITH IDD. 5540 04:11:21,221 --> 04:11:24,858 IN ADDITION TO THE TRAINING 5541 04:11:24,858 --> 04:11:26,259 THAT'S CUSTOMIZABLE TO THE LOCAL 5542 04:11:26,259 --> 04:11:29,029 COMMUNITY CAN BE USED FOR 5543 04:11:29,029 --> 04:11:30,163 VARIOUS DIFFERENT TYPES OF 5544 04:11:30,163 --> 04:11:32,999 CRISIS RESPONSE PROGRAMMING AT 5545 04:11:32,999 --> 04:11:37,704 THE LOCAL LEVEL. 5546 04:11:37,704 --> 04:11:39,439 INCLUDING RESPONSES DEVELOPED A 5547 04:11:39,439 --> 04:11:46,580 NUMBER OF RESOURCES SPECIFIC TO 5548 04:11:46,580 --> 04:11:49,149 LAW ENFORCEMENT. 5549 04:11:49,149 --> 04:11:51,284 WE HAVE A RESOURCE ON MENTAL 5550 04:11:51,284 --> 04:11:52,986 HEALTH CONDITIONS AND 5551 04:11:52,986 --> 04:11:53,787 DEVELOPMENT DISABILITIES AND 5552 04:11:53,787 --> 04:11:56,990 KNOWING THE DIFFERENCE THAT IS 5553 04:11:56,990 --> 04:12:00,761 SPECIFICALLY TARGETED TO LAW 5554 04:12:00,761 --> 04:12:01,695 ENFORCEMENT AS WELL AS ANOTHER 5555 04:12:01,695 --> 04:12:04,998 RESOURCE ON DEVELOPMENT 5556 04:12:04,998 --> 04:12:08,502 DISABILITIES WHAT OFFICERS NEED 5557 04:12:08,502 --> 04:12:10,737 TO KNOW AND SPECIFICALLY 5558 04:12:10,737 --> 04:12:11,772 DISCUSSES HOW UNDERSTANDING MORE 5559 04:12:11,772 --> 04:12:13,106 ABOUT DISABILITIES LEADS TO SAFE 5560 04:12:13,106 --> 04:12:16,109 AND EFFECTIVE INTERACTIONS AND 5561 04:12:16,109 --> 04:12:17,644 PROVIDES EXAMPLES OF POSSIBLE 5562 04:12:17,644 --> 04:12:20,180 BEHAVIORS OF PEOPLE WITH 5563 04:12:20,180 --> 04:12:20,981 DEVELOPMENT DISABILITIES AND 5564 04:12:20,981 --> 04:12:31,358 RECOMMENDED RESPONSES. 5565 04:12:42,702 --> 04:12:44,805 THERE'S STEPS FOR DEFLECTION AND 5566 04:12:44,805 --> 04:12:45,405 DIVERSION. 5567 04:12:45,405 --> 04:12:48,675 THIS IS A MULTI-PAGE GUIDE AND 5568 04:12:48,675 --> 04:12:51,244 OFFERS INSIGHTS INTO THIS 5569 04:12:51,244 --> 04:12:52,045 DEVELOPMENT DISABILITY COMMUNITY 5570 04:12:52,045 --> 04:12:54,714 AND OFFERS SUGGESTIONS FOR 5571 04:12:54,714 --> 04:12:56,249 SUCCESSFUL INTERACTIONS AND 5572 04:12:56,249 --> 04:13:00,720 OUTLINES OPTIONS FOR SAFE AND 5573 04:13:00,720 --> 04:13:03,456 EFFECTIVE DEFLECTION AND RE-REST 5574 04:13:03,456 --> 04:13:07,260 DIVERSION WHEN PEOPLE WITH IDD 5575 04:13:07,260 --> 04:13:08,829 ENCOUNTER LAW ENFORCEMENT AND 5576 04:13:08,829 --> 04:13:09,462 EXPERIENCE A CRISIS AND IB NEED 5577 04:13:09,462 --> 04:13:13,533 OF SERVICES. 5578 04:13:13,533 --> 04:13:16,736 IT DESCRIBES THE FOUR KEY STEPS 5579 04:13:16,736 --> 04:13:18,405 OFFICERS CAN TAKE TO SUPPORT 5580 04:13:18,405 --> 04:13:22,175 DEFLECTION AND PRE-ARREST 5581 04:13:22,175 --> 04:13:24,411 DIVERSION AND COMMUNICATION, 5582 04:13:24,411 --> 04:13:25,912 ACCOMMODATION AND SUPPORT AND 5583 04:13:25,912 --> 04:13:29,015 THIS WAS ALL ADAPTIVE FROM THE 5584 04:13:29,015 --> 04:13:30,350 STAGES OF THE ARC'S PATHWAYS TO 5585 04:13:30,350 --> 04:13:35,856 JUSTICE MODEL. 5586 04:13:35,856 --> 04:13:38,225 I WANT TO HIGHLIGHT THIS 5587 04:13:38,225 --> 04:13:40,427 INCLUDES A LOT OF EXAMPLE OF 5588 04:13:40,427 --> 04:13:41,061 ACCOMMODATIONS FOR INDIVIDUALS 5589 04:13:41,061 --> 04:13:45,999 WITH IDD. 5590 04:13:45,999 --> 04:13:48,168 IT SEEKS IN COMMUNICATION 5591 04:13:48,168 --> 04:13:52,005 EFFORTS AND SEEK SUPPORTIVE 5592 04:13:52,005 --> 04:13:52,672 SERVICES. 5593 04:13:52,672 --> 04:13:56,643 AND I WANT TO ALSO LET YOU KNOW 5594 04:13:56,643 --> 04:13:58,011 THAT THIS EFFORT'S CONTINUING. 5595 04:13:58,011 --> 04:14:02,182 WE HAVE THE ICP NOW LEADS A NEW 5596 04:14:02,182 --> 04:14:06,920 BJA FUNDED EFFORT TO EXPAND ON 5597 04:14:06,920 --> 04:14:08,889 THIS TRAINING AND TECHNICAL 5598 04:14:08,889 --> 04:14:12,125 ASSISTANCE THAT WAS AWARDED IN 5599 04:14:12,125 --> 04:14:12,325 2023. 5600 04:14:12,325 --> 04:14:15,295 AND THIS INCLUDES ENHANCING 5601 04:14:15,295 --> 04:14:17,297 INTERACTION BETWEEN LAW 5602 04:14:17,297 --> 04:14:19,666 ENFORCEMENT BUT IT ALSO INCLUDES 5603 04:14:19,666 --> 04:14:21,668 CORRECTIONAL OFFICERS AND PEOPLE 5604 04:14:21,668 --> 04:14:23,003 WITH IDD. 5605 04:14:23,003 --> 04:14:26,006 THIS IS IN PARTNERSHIP WITH IS 5606 04:14:26,006 --> 04:14:28,608 THE ARC OF THE UNITED STATES, 5607 04:14:28,608 --> 04:14:31,244 POLICY RESEARCH ASSOCIATES, THE 5608 04:14:31,244 --> 04:14:32,712 NATIONAL POLICING INSTITUTE AND 5609 04:14:32,712 --> 04:14:34,281 THE AMERICAN CORRECTIONAL 5610 04:14:34,281 --> 04:14:39,920 ASSOCIATION TO FURTHER DEVELOP 5611 04:14:39,920 --> 04:14:41,087 RESOURCES TO TRAIN AND TECHNICAL 5612 04:14:41,087 --> 04:14:44,324 ASSISTANCE TO 39 COMMUNITIES 5613 04:14:44,324 --> 04:14:46,259 FUNDED BY ASSISTANCE AROUND THE 5614 04:14:46,259 --> 04:14:51,731 COUNTRY AND RECEIVE GRANT 5615 04:14:51,731 --> 04:15:02,175 FUNDING DIRECTLY FROM BJA. 5616 04:15:07,914 --> 04:15:09,883 BJA PROVIDED FUNDING AND SUPPORT 5617 04:15:09,883 --> 04:15:13,019 TO REDUCE INJURIES AND DEATHS OF 5618 04:15:13,019 --> 04:15:18,158 INDIVIDUALS WHO GO MISSING DUE 5619 04:15:18,158 --> 04:15:25,832 TO THEIR DEVELOPMENTAL 5620 04:15:25,832 --> 04:15:28,168 DISABILITY AND HAVE RESOURCES 5621 04:15:28,168 --> 04:15:32,272 WITH THE ARC AND NATIONAL CENTER 5622 04:15:32,272 --> 04:15:34,174 OF CHILDREN AS WELL AS THE 5623 04:15:34,174 --> 04:15:36,109 AUTISM SOCIETY OF AMERICA AND I 5624 04:15:36,109 --> 04:15:41,815 WILL JUST DESCRIBE A FEW OF THEM 5625 04:15:41,815 --> 04:15:47,420 HERE WE'VE DEVELOP GUIDANCE AND 5626 04:15:47,420 --> 04:15:50,657 YOU CAN SEE THE RESOURCES AS 5627 04:15:50,657 --> 04:15:58,398 WELL CLICKING LINK. 5628 04:15:58,398 --> 04:16:00,066 AN EASY QR CODE IF YOU POINT 5629 04:16:00,066 --> 04:16:01,735 YOUR PHONE IN THE PRESENTATION 5630 04:16:01,735 --> 04:16:02,769 YOU CAN GO COLLECTLY TO DOWNLOAD 5631 04:16:02,769 --> 04:16:05,372 ALL THOSE RESOURCES. 5632 04:16:05,372 --> 04:16:07,240 AND THANK YOU FOR INVITING ME TO 5633 04:16:07,240 --> 04:16:08,975 SHARE THESE RESOURCES WITH YOU 5634 04:16:08,975 --> 04:16:14,381 TODAY. 5635 04:16:14,381 --> 04:16:15,949 >> Josh: THANK YOU VERY MUCH, 5636 04:16:15,949 --> 04:16:18,985 BROOKE AND KELLY, BOTH. 5637 04:16:18,985 --> 04:16:21,788 OUR FINAL PRESENTER FOR THIS 5638 04:16:21,788 --> 04:16:23,690 SESSION IS OFFICER LAWIE RAY HE 5639 04:16:23,690 --> 04:16:25,692 IS FROM THE MONTGOMERY POLICE 5640 04:16:25,692 --> 04:16:27,594 DEPARTMENT IN MARYLAND AND THIS 5641 04:16:27,594 --> 04:16:30,330 VERY COUNTY WE'RE IN NOW. 5642 04:16:30,330 --> 04:16:31,197 OFFICER REYES WILL BE DISCUSSING 5643 04:16:31,197 --> 04:16:35,869 THE MONTGOMERY AUTISM IDD UNIT. 5644 04:16:35,869 --> 04:16:36,669 >> HELLO, EVERYONE. 5645 04:16:36,669 --> 04:16:42,542 I'M VERY EXCITED TO BE HERE. 5646 04:16:42,542 --> 04:16:43,676 IT'S MORE THAN JUST EXCITING. 5647 04:16:43,676 --> 04:16:45,612 I SEE FAMILIAR FACES IN THE 5648 04:16:45,612 --> 04:16:48,048 AUDIENCE I'VE KNOWN 20 YEARS 5649 04:16:48,048 --> 04:16:48,681 WORKING HERE AND WE LOVE EACH 5650 04:16:48,681 --> 04:16:50,417 OTHER AND WE'RE A FAMILY AND I 5651 04:16:50,417 --> 04:16:52,986 CALLED UPON MANY PEOPLE IN THE 5652 04:16:52,986 --> 04:16:56,456 ROOM AND SAID HOLY MOLY I NEED 5653 04:16:56,456 --> 04:16:57,991 HELP WITH SOMETHING AND I WANT 5654 04:16:57,991 --> 04:17:00,460 TO SHARE THAT BUT THAT IS MORE 5655 04:17:00,460 --> 04:17:03,997 THAN JUST OFFICER REYES OR 5656 04:17:03,997 --> 04:17:04,831 LAURIE PRESENTING. 5657 04:17:04,831 --> 04:17:07,000 I HAVE TO SAY THANK YOU BECAUSE 5658 04:17:07,000 --> 04:17:09,002 I CALLED UPON A LOT OF YOU GUYS 5659 04:17:09,002 --> 04:17:12,972 TO HELP ME OUT ON THE JOURNEY 5660 04:17:12,972 --> 04:17:23,516 WHEN SOMEONE SAYS WHAT DOES L 5661 04:17:25,452 --> 04:17:27,420 LAURIE REYES KNOW AND I GET TO 5662 04:17:27,420 --> 04:17:29,522 STAND UP HERE AND BE A VOICE. 5663 04:17:29,522 --> 04:17:31,958 IT'S HARD TO STAND UP HERE AT 5664 04:17:31,958 --> 04:17:35,495 THE PODIUM I WALK AROUND A LOT 5665 04:17:35,495 --> 04:17:37,397 AND HAVE TO ATTACH MYSELF TO THE 5666 04:17:37,397 --> 04:17:39,232 PODIUM SO I'M NOT WALKING 5667 04:17:39,232 --> 04:17:39,999 AROUND. 5668 04:17:39,999 --> 04:17:41,835 I'VE BEEN A POLICE OFFICER 26 5669 04:17:41,835 --> 04:17:44,938 YEARS I'VE RUN THE MONTGOMERY 5670 04:17:44,938 --> 04:17:46,639 COUNTY POLICE IDD UNIT FOR 20 5671 04:17:46,639 --> 04:17:46,840 YEARS. 5672 04:17:46,840 --> 04:17:52,979 IT STARTED IN 2004. 5673 04:17:52,979 --> 04:17:54,581 IT STARTED WHEN OFFICERS WOULD 5674 04:17:54,581 --> 04:17:57,350 SAY AUTISM, WHAT IS THAT? 5675 04:17:57,350 --> 04:18:04,924 THAT WAS 20 YEARS AGO. 5676 04:18:04,924 --> 04:18:10,029 IT'S THE LONGEST NAMED PROGRAM 5677 04:18:10,029 --> 04:18:11,464 AND I DON'T GIVE A FLIP BECAUSE 5678 04:18:11,464 --> 04:18:14,734 WHEN YOU'RE LOOKING FOR 5679 04:18:14,734 --> 04:18:16,035 RESOURCES IN THE POLICE 5680 04:18:16,035 --> 04:18:18,404 COMMUNITY IT'S GOING PULL UP AND 5681 04:18:18,404 --> 04:18:24,978 SAY I MAY LIVE IN NEVADA BUT 5682 04:18:24,978 --> 04:18:30,917 OFFICER LAURIE REYES MAY HELP 5683 04:18:30,917 --> 04:18:33,887 OUT AND IT'S THE TRAINING JULY 5684 04:18:33,887 --> 04:18:35,255 REACH UNIT. 5685 04:18:35,255 --> 04:18:37,357 IT STARTED IN 2004. 5686 04:18:37,357 --> 04:18:38,591 WE PROVIDE TRAINING AND 5687 04:18:38,591 --> 04:18:41,161 EDUCATION TO ALL OF OUR OFFICERS 5688 04:18:41,161 --> 04:18:44,030 SINCE ABOUT 2010 WE STARTED 5689 04:18:44,030 --> 04:18:45,532 TEACHING OFFICERS. 5690 04:18:45,532 --> 04:18:48,101 WE'LL WOULD SAY WHAT DOES LAURIE 5691 04:18:48,101 --> 04:18:50,603 REYES KNOW AND WHERE DID YOU GET 5692 04:18:50,603 --> 04:18:51,104 YOUR EDUCATION? 5693 04:18:51,104 --> 04:18:52,906 I GET MY EDUCATION FROM THE 5694 04:18:52,906 --> 04:18:54,807 PARENTS SITTING BACK LOOKING 5695 04:18:54,807 --> 04:18:56,976 BACK AT ME AND ALL THESE PEOPLE 5696 04:18:56,976 --> 04:19:00,346 THAT HAVE GIVEN ME THEIR OWN 5697 04:19:00,346 --> 04:19:01,614 JOURNEYS AND SAID THIS IS WHAT 5698 04:19:01,614 --> 04:19:03,416 OUR OFFICERS NEED TO KNOW. 5699 04:19:03,416 --> 04:19:05,084 TRAINING AND EDUCATION, 5700 04:19:05,084 --> 04:19:10,190 OUTREACH, EMPOWERMENT. 5701 04:19:10,190 --> 04:19:12,559 WARDING A FAMILY MAYBE WE 5702 04:19:12,559 --> 04:19:13,893 SEARCHED FOR THEIR SON THREE 5703 04:19:13,893 --> 04:19:19,098 TIMES AND BUT WILLING TO GET ON 5704 04:19:19,098 --> 04:19:24,370 THE NEWS AND SAY CALL 9-1-1 AND 5705 04:19:24,370 --> 04:19:27,207 THEY'LL HELP YOU AND A PARTNER 5706 04:19:27,207 --> 04:19:28,408 WHO WOULD DIE IN THE BACK IF I 5707 04:19:28,408 --> 04:19:32,812 TOLD HER TO COME UP RIGHT NOW, 5708 04:19:32,812 --> 04:19:34,781 FOLLOW-UP AND MOST IMPORTANT, 5709 04:19:34,781 --> 04:19:35,048 RESPONSE. 5710 04:19:35,048 --> 04:19:38,384 YOU CANNOT TELL A FAMILY TO CALL 5711 04:19:38,384 --> 04:19:40,253 9-1-1 IF YOU'RE IN NEED AND THEN 5712 04:19:40,253 --> 04:19:42,989 NOT PROVIDE A GREAT RESPONSE. 5713 04:19:42,989 --> 04:19:48,027 YOU CAN'T DO THAT. 5714 04:19:48,027 --> 04:19:57,003 SO THE UNIT, THAT'S IT IN A 5715 04:19:57,003 --> 04:19:59,272 NUTSHELL AND I KNOW WE'RE 5716 04:19:59,272 --> 04:20:01,374 PREACHING TO THE CHOIR. 5717 04:20:01,374 --> 04:20:03,076 I SHARE WITH YOU BECAUSE THIS IS 5718 04:20:03,076 --> 04:20:04,644 WHAT WE TEACH OUR OFFICERS TOO. 5719 04:20:04,644 --> 04:20:07,013 JUST TODAY MYSELF AND AMY TATE 5720 04:20:07,013 --> 04:20:10,350 OUR CIT OFFICERS. 5721 04:20:10,350 --> 04:20:12,986 THAT'S THE OFFICERS RECEIVING A 5722 04:20:12,986 --> 04:20:16,155 WE 5723 04:20:16,155 --> 04:20:19,692 WEEK LONG CLASS ON MENTAL 5724 04:20:19,692 --> 04:20:23,162 HEALTH AND WHY DO STATISTICS 5725 04:20:23,162 --> 04:20:24,197 MATTER WHEN YOU TEACH OFFICERS 5726 04:20:24,197 --> 04:20:25,798 BEFORE LUNCH AND A WHOLE SLIDE 5727 04:20:25,798 --> 04:20:26,599 OF STATISTICS. 5728 04:20:26,599 --> 04:20:28,801 SHE'S GOT TO AMP IT UP A LITTLE 5729 04:20:28,801 --> 04:20:29,402 BIT. 5730 04:20:29,402 --> 04:20:32,872 WHY DO I SHARE THIS WITH ALL OF 5731 04:20:32,872 --> 04:20:33,239 YOU? 5732 04:20:33,239 --> 04:20:40,179 THIS IS WHAT WE'RE SEEING IN LAW 5733 04:20:40,179 --> 04:20:40,613 ENFORCEMENT. 5734 04:20:40,613 --> 04:20:43,683 WE'RE AT 1 IN 39 IN MARYLAND AND 5735 04:20:43,683 --> 04:20:45,385 1 IN 44 BIRTHS. 5736 04:20:45,385 --> 04:20:46,052 WHY'S THAT MATTER? 5737 04:20:46,052 --> 04:20:49,455 WHEN I STARTED THE UNIT IN 2004 5738 04:20:49,455 --> 04:20:52,992 MOST THE CALLS WE WERE HANDLING 5739 04:20:52,992 --> 04:20:55,728 FOR PEANUTS WERE LITTLE GUYS ON 5740 04:20:55,728 --> 04:20:57,096 THE AUTISM SPECTRUM. 5741 04:20:57,096 --> 04:20:58,631 YOU TEACH OFFICERS AND SAY WHY'S 5742 04:20:58,631 --> 04:20:59,265 IT MATTER? 5743 04:20:59,265 --> 04:21:01,367 WHO IS RESPONDING TO A CALL FOR 5744 04:21:01,367 --> 04:21:04,037 A 5-YEAR-OLD IN THE MIDDLE OF 5745 04:21:04,037 --> 04:21:05,605 THE HIGHWAY? 5746 04:21:05,605 --> 04:21:11,377 WHO IS RESPONDING IN AYOU W YOU 5747 04:21:11,377 --> 04:21:13,680 WILL -- RESPONDING ALL OF YOU. 5748 04:21:13,680 --> 04:21:18,851 MY MOM IN HER FORD FOCUS STOPPED 5749 04:21:18,851 --> 04:21:25,258 HER CAR TO HELP A 5-YEAR-OLD AND 5750 04:21:25,258 --> 04:21:28,928 WE HAVE THEM CALLING THE POLICE 5751 04:21:28,928 --> 04:21:30,963 AND WHY DO THE STATS MATTER TO 5752 04:21:30,963 --> 04:21:31,331 POLICE OFFICERS? 5753 04:21:31,331 --> 04:21:34,033 IT MATTERS BECAUSE THERE'S AN 5754 04:21:34,033 --> 04:21:37,203 INCREASE IN AGE AND PREVALENCY. 5755 04:21:37,203 --> 04:21:39,706 THAT'S WHAT WE'RE FACING IN LAW 5756 04:21:39,706 --> 04:21:40,139 ENFORCEMENT. 5757 04:21:40,139 --> 04:21:44,944 SO THAT'S WHY THE STATS AND WHY 5758 04:21:44,944 --> 04:21:47,313 WE SHARE THEM WITH POLICE 5759 04:21:47,313 --> 04:21:47,580 OFFICERS. 5760 04:21:47,580 --> 04:21:51,184 WE TALK ABOUT TRAINING POLICE 5761 04:21:51,184 --> 04:21:51,451 OFFICERS. 5762 04:21:51,451 --> 04:21:53,119 IT'S NOT JUST ABOUT TRAINING. 5763 04:21:53,119 --> 04:21:55,488 WHAT WE CREATED IN MONTGOMERY 5764 04:21:55,488 --> 04:21:57,090 COUNTY IS A CULTURE OF WHAT WE 5765 04:21:57,090 --> 04:21:58,891 ONCE SAID WAS AWARENESS. 5766 04:21:58,891 --> 04:22:00,993 FORGET ABOUT AWARENESS. 5767 04:22:00,993 --> 04:22:02,195 IT'S ACTION. 5768 04:22:02,195 --> 04:22:03,663 IT'S A CULTURE OF ACTION. 5769 04:22:03,663 --> 04:22:06,466 THAT'S WHAT WE'VE CREATED BY 5770 04:22:06,466 --> 04:22:07,767 EDUCATING OUR OFFICERS. 5771 04:22:07,767 --> 04:22:11,137 WHAT'S STARTED AS JUST A SIMPLE 5772 04:22:11,137 --> 04:22:13,539 CLASS OF HEY, HERE'S SOME 5773 04:22:13,539 --> 04:22:16,109 BEHAVIORS OR WHAT YOU MIGHT 5774 04:22:16,109 --> 04:22:18,678 ENCOUNTER WITH WANDERING OR WHAT 5775 04:22:18,678 --> 04:22:21,681 YOU MIGHT ENCOUNTER WITH SOMEONE 5776 04:22:21,681 --> 04:22:22,415 IN CRISIS. 5777 04:22:22,415 --> 04:22:24,016 IT'S GONE ON TO OFFICERS NOT 5778 04:22:24,016 --> 04:22:25,852 LEAVING THE CALL WITHOUT TRYING 5779 04:22:25,852 --> 04:22:28,154 TO PROVIDE INDIVIDUALS WITH 5780 04:22:28,154 --> 04:22:31,057 OTHER RESOURCES. 5781 04:22:31,057 --> 04:22:33,926 BEING IN OFFICER LOOKING OUT 5782 04:22:33,926 --> 04:22:35,928 BEYOND THE FIRST CALL. 5783 04:22:35,928 --> 04:22:40,199 SO AGAIN, THE STATS MATTER. 5784 04:22:40,199 --> 04:22:42,568 ALL RIGHT, SO MANY OF YOU KNOW 5785 04:22:42,568 --> 04:22:45,671 THIS YOUNG MAN ON THE SLIDE 5786 04:22:45,671 --> 04:22:47,907 RIGHT HERE AND MAYBE HIS MOM IS 5787 04:22:47,907 --> 04:22:50,910 ON THIS, MAYBE HIS MOM MAY BE ON 5788 04:22:50,910 --> 04:22:51,511 THIS CALL. 5789 04:22:51,511 --> 04:22:56,949 SO WHAT WE'RE SEEING IN LAW 5790 04:22:56,949 --> 04:23:01,621 ENFORCEMENT WE'RE SEEING IN 5791 04:23:01,621 --> 04:23:03,156 MONTGOMERY COUNTY THREE TO EIGHT 5792 04:23:03,156 --> 04:23:06,726 FINDS WEEK WHERE WE ROEKT AN 5793 04:23:06,726 --> 04:23:08,060 INDIVIDUAL WITH AUTISM USUALLY 5794 04:23:08,060 --> 04:23:09,962 THAT WANDERED AND LOCATE BEFORE 5795 04:23:09,962 --> 04:23:11,397 CAREGIVERS HAVE CONTACTED US, 5796 04:23:11,397 --> 04:23:13,599 THREE TO EIGHT A WEEK. 5797 04:23:13,599 --> 04:23:15,435 WE ALSO HAPPENEDAL ABOUT TWO 5798 04:23:15,435 --> 04:23:17,837 CALLS A DAY FOR INDIVIDUALS ON 5799 04:23:17,837 --> 04:23:18,871 THE AUTISM SPECTRUM. 5800 04:23:18,871 --> 04:23:21,007 IN ONE WEEK, IN JUST ONE 5801 04:23:21,007 --> 04:23:22,608 CALCULATION FROM MY SERGEANT WE 5802 04:23:22,608 --> 04:23:24,977 HAD 27 CALLS FOR SERVICE FOR 5803 04:23:24,977 --> 04:23:25,511 INDIVIDUALS ON THE AUTISM 5804 04:23:25,511 --> 04:23:28,281 SPECTRUM. 5805 04:23:28,281 --> 04:23:30,983 SO WHAT WE'RE SEEING AND I KNOW 5806 04:23:30,983 --> 04:23:32,585 I SAY THIS CHALLENGE. 5807 04:23:32,585 --> 04:23:36,522 IT'S A CHALLENGE IN LAW 5808 04:23:36,522 --> 04:23:37,690 ENFORCEMENT BECAUSE WE'RE SEEING 5809 04:23:37,690 --> 04:23:39,158 CALLS OF A MORE SERIOUS NATURE. 5810 04:23:39,158 --> 04:23:47,033 NOT BEYOND WANDERING ALONE FOR 5811 04:23:47,033 --> 04:23:52,472 INDIVIDUALS IN CRISIS, 5812 04:23:52,472 --> 04:23:53,573 CAREGIVERS IN CRISIS THAT NEEDS 5813 04:23:53,573 --> 04:23:55,274 SERVICES AND RESOURCES AND OFTEN 5814 04:23:55,274 --> 04:23:58,077 TIMES IT'S ME, AMY, THE PATROL 5815 04:23:58,077 --> 04:23:58,678 OFFICERS PROVIDING THEM THESE 5816 04:23:58,678 --> 04:24:04,417 RESOURCES. 5817 04:24:04,417 --> 04:24:06,319 WE'RE ALSO SEEING AN INCREASE 5818 04:24:06,319 --> 04:24:09,021 AND AS I STAND HERE AT NIH WE'RE 5819 04:24:09,021 --> 04:24:10,156 SEEING AN INCREASE IN 5820 04:24:10,156 --> 04:24:11,524 CO-OCCURRING CONDITIONS. 5821 04:24:11,524 --> 04:24:13,960 NOT ONLY THAT, CO-OCCURRING 5822 04:24:13,960 --> 04:24:19,332 CONDITIONS IN OUR YOUNG GUYS. 5823 04:24:19,332 --> 04:24:27,306 WE'RE SEEING AUTISM IN 5824 04:24:27,306 --> 04:24:28,374 SIGNIFI 5825 04:24:28,374 --> 04:24:30,176 SIGNIFICANT MENTAL HEALTH CRISIS 5826 04:24:30,176 --> 04:24:40,720 AND INCREASE IN PREVALENCY AND 5827 04:24:42,588 --> 04:24:44,991 WHEN ALL WE CAN DO IS GO TO A 5828 04:24:44,991 --> 04:24:46,425 HOSPITAL ON AN EMERGENCY 5829 04:24:46,425 --> 04:24:47,660 PETITION WHERE THEY'RE RELEASED 5830 04:24:47,660 --> 04:24:48,828 30 MINUTES LATER, THAT'S WHAT WE 5831 04:24:48,828 --> 04:24:50,062 GOT TO DO BECAUSE MAYBE THAT'S 5832 04:24:50,062 --> 04:24:52,532 WHAT THE PARENT NEEDED AT THAT 5833 04:24:52,532 --> 04:25:02,642 TIME. 5834 04:25:07,113 --> 04:25:13,319 WHAT ARE WE DOING IN RESPONSE? 5835 04:25:13,319 --> 04:25:14,387 AMY WILL BE PUT ON THE SPOT. 5836 04:25:14,387 --> 04:25:16,489 WE STARTED TO DO FOLLOW-UPS WITH 5837 04:25:16,489 --> 04:25:18,024 THE FAMILIES. 5838 04:25:18,024 --> 04:25:23,462 AFTER A CALL FOR WANDERI IING 5839 04:25:23,462 --> 04:25:25,031 ELEPMENT OR SOMEBODY IN CRISIS, 5840 04:25:25,031 --> 04:25:27,400 IF WE CAN'T RESPOND WE CALL THE 5841 04:25:27,400 --> 04:25:27,700 FAMILY. 5842 04:25:27,700 --> 04:25:30,670 NOT ONLY DID OFFICERS ARE WE 5843 04:25:30,670 --> 04:25:32,605 ASKING DID OFFICERS DO 5844 04:25:32,605 --> 04:25:35,975 EVERYTHING WRITE -- RIGHT OR 5845 04:25:35,975 --> 04:25:37,677 BETTER AND WHAT WOULD YOU HAVE 5846 04:25:37,677 --> 04:25:39,679 WANTED BUT SAYING ARE YOU AWARE 5847 04:25:39,679 --> 04:25:40,880 OF THIS ORGANIZATION? 5848 04:25:40,880 --> 04:25:42,148 ARE YOU IN THE AUTISM WAIVER 5849 04:25:42,148 --> 04:25:42,381 YET? 5850 04:25:42,381 --> 04:25:50,723 ARE YOU REACHING OUT TO DDA? 5851 04:25:50,723 --> 04:25:51,724 SOMETIMES FAMILIES REPRESENT 5852 04:25:51,724 --> 04:25:52,091 THERE. 5853 04:25:52,091 --> 04:25:57,530 LAST YEAR IT WAS 600 FOLLOW-UPS. 5854 04:25:57,530 --> 04:26:01,634 600 FOLLOW-UPS FROM AMY AND A 5855 04:26:01,634 --> 04:26:03,436 CALLING FAMILY SAYING WHAT DO 5856 04:26:03,436 --> 04:26:08,441 YOU NEED FROM US? 5857 04:26:08,441 --> 04:26:10,776 ALSO, IN THIS ERA WHERE WE 5858 04:26:10,776 --> 04:26:11,544 UNDERSTAND LAW ENFORCEMENT 5859 04:26:11,544 --> 04:26:12,645 DOESN'T ALWAYS GET IT RIGHT. 5860 04:26:12,645 --> 04:26:14,647 WHEN YOU CREATE A CULTURE OF 5861 04:26:14,647 --> 04:26:18,417 ACTION AND AWARENESS IT BEGINS 5862 04:26:18,417 --> 04:26:19,552 TO BE MORE THAN TRAINING AND 5863 04:26:19,552 --> 04:26:21,587 THAT HAPPENS THROUGH A PROCESS 5864 04:26:21,587 --> 04:26:22,588 AND I BELIEVE THAT'S WHAT WE'VE 5865 04:26:22,588 --> 04:26:32,765 DONE HERE. 5866 04:26:34,634 --> 04:26:36,402 IT HAS TO BE ALL INVOLVED. 5867 04:26:36,402 --> 04:26:39,271 I WANT TO SKIP FORWARD. 5868 04:26:39,271 --> 04:26:40,773 WHAT ARE WE DOING? 5869 04:26:40,773 --> 04:26:43,075 ONE INITIATIVE THAT I'M PROBABLY 5870 04:26:43,075 --> 04:26:47,680 MOST PROUD OF IS THE WORK WE DO 5871 04:26:47,680 --> 04:26:48,314 IN SCHOOLS. 5872 04:26:48,314 --> 04:26:52,118 THE WORK WE DO WITH INDIVIDUALS 5873 04:26:52,118 --> 04:26:54,854 NAVIGATING AUTISM AND THEIR WAY 5874 04:26:54,854 --> 04:26:56,789 TO INDEPENDENCE WHATEVER THAT 5875 04:26:56,789 --> 04:26:57,156 MAY BE. 5876 04:26:57,156 --> 04:26:59,258 AMY AND A PRESENTING TO 5877 04:26:59,258 --> 04:26:59,558 INDIVIDUALS. 5878 04:26:59,558 --> 04:27:01,861 THIS IS HOW YOU'RE CREATING THE 5879 04:27:01,861 --> 04:27:02,495 WHOLE COMMUNITY UNDERSTANDING 5880 04:27:02,495 --> 04:27:07,700 WHAT NEEDS TO HAPPEN. 5881 04:27:07,700 --> 04:27:10,002 WE'RE IN THE SCHOOLS AND TALKING 5882 04:27:10,002 --> 04:27:11,504 TO INDIVIDUALS SAYING HOW CAN 5883 04:27:11,504 --> 04:27:13,372 YOU HAVE A POSITIVE INTERACTION 5884 04:27:13,372 --> 04:27:14,507 WITH LAW ENFORCEMENT. 5885 04:27:14,507 --> 04:27:16,342 I GET THE CONTROVERSY OF THAT. 5886 04:27:16,342 --> 04:27:18,244 POLICE SHOULD KNOW BUT IT HAS TO 5887 04:27:18,244 --> 04:27:20,680 BE A TOTAL APPROACH AND ERN HAS 5888 04:27:20,680 --> 04:27:23,215 SAID IT HAS TO BE A TOTAL 5889 04:27:23,215 --> 04:27:23,582 APPROACH. 5890 04:27:23,582 --> 04:27:24,884 WE ARE IN THE SCHOOLS. 5891 04:27:24,884 --> 04:27:27,253 IT'S THE BEST PART OF OUR JOB. 5892 04:27:27,253 --> 04:27:29,722 IT TRULY IS FROM ELEMENTARY TO 5893 04:27:29,722 --> 04:27:30,456 HIGH SCHOOL. 5894 04:27:30,456 --> 04:27:32,191 I INVITE IN WHO WOULD EVER WANTS 5895 04:27:32,191 --> 04:27:35,194 TO BE THERE WE'LL BE AT DAMASCUS 5896 04:27:35,194 --> 04:27:36,495 HIGH SCHOOL THAT'S ALWAYS FUN. 5897 04:27:36,495 --> 04:27:40,032 IF YOUR INTERESTED IN WHAT IS 5898 04:27:40,032 --> 04:27:41,967 THE PROGRAM DOING, COME OUT AND 5899 04:27:41,967 --> 04:27:46,305 SEE. 5900 04:27:46,305 --> 04:27:50,009 SOME OF OUR RESOURCES AND EITHER 5901 04:27:50,009 --> 04:27:52,511 THINGS WE'RE DOING A TRAFFIC 5902 04:27:52,511 --> 04:27:54,080 STOP CLASS AND IN-PERSON TRAFFIC 5903 04:27:54,080 --> 04:27:57,483 STOP FOR PASSENGERS AND FOR 5904 04:27:57,483 --> 04:27:57,717 DRIVERS. 5905 04:27:57,717 --> 04:28:00,653 WE ALSO THERE'S ANOTHER PICTURE 5906 04:28:00,653 --> 04:28:01,087 OF THE SCHOOL. 5907 04:28:01,087 --> 04:28:04,623 I HAD A YOUNG LADY WITH AUTISM 5908 04:28:04,623 --> 04:28:06,892 WHO WONDERED FROM HER HOME AND 5909 04:28:06,892 --> 04:28:07,760 STOLE A HORSE. 5910 04:28:07,760 --> 04:28:09,428 YOU CAN'T MAKE UP SOME OF THE 5911 04:28:09,428 --> 04:28:10,229 STORIES WE HAVE HERE. 5912 04:28:10,229 --> 04:28:15,568 AS GOD AS MY WITNESS, MY GIRL IS 5913 04:28:15,568 --> 04:28:19,839 LIKE PIPPI LONG STOCKING AND 5914 04:28:19,839 --> 04:28:22,641 STOLE A HORSE AND TOOK IT ON A 5915 04:28:22,641 --> 04:28:23,342 RIDE. 5916 04:28:23,342 --> 04:28:25,177 OFFICERS DID A FANTASTIC JOB BUT 5917 04:28:25,177 --> 04:28:26,212 HERE'S WHERE THE OTHER PART 5918 04:28:26,212 --> 04:28:26,712 COMES IN. 5919 04:28:26,712 --> 04:28:29,215 WE'RE NOT UPSET WITH HER OR HER 5920 04:28:29,215 --> 04:28:29,548 MOM. 5921 04:28:29,548 --> 04:28:32,485 I SWEAR TO YOU SHE ALSO HAD A 5922 04:28:32,485 --> 04:28:34,620 PICTURE OF THIS AND NOT ONLY 5923 04:28:34,620 --> 04:28:36,989 STOLE THE HORSE THE SECOND TIME 5924 04:28:36,989 --> 04:28:39,592 BUT BROUGHT THE HORSE TO HER 5925 04:28:39,592 --> 04:28:39,792 YARD. 5926 04:28:39,792 --> 04:28:41,360 WHAT DO YOU DO WITH THAT. 5927 04:28:41,360 --> 04:28:45,931 YOU EMPOWER HER AND YOU SAY HEY, 5928 04:28:45,931 --> 04:28:48,367 PARK POLICE UNIT THIS YOUNG LADY 5929 04:28:48,367 --> 04:28:50,603 LOVE HER SOME HORSES SO MAYBE 5930 04:28:50,603 --> 04:28:52,972 SHE NEEDS TO SEE HORSES AND 5931 04:28:52,972 --> 04:28:56,175 LEARN ABOUT WHAT NOT STEALING 5932 04:28:56,175 --> 04:28:58,677 THEM BUT LEARN THAT WE'RE NOT 5933 04:28:58,677 --> 04:29:00,980 MAD AT HER. 5934 04:29:00,980 --> 04:29:04,283 SHE'S NAVIGATING HER JOURNEY AND 5935 04:29:04,283 --> 04:29:06,852 WE'RE NOT MAD AT HER AND HER MOM 5936 04:29:06,852 --> 04:29:08,821 BECAUSE HOW CAN YOU POSSIBLY 5937 04:29:08,821 --> 04:29:10,990 KEEP YOUR EYE ON SOMEONE. 5938 04:29:10,990 --> 04:29:16,629 MORE OF OUR ACTIONS AND 5939 04:29:16,629 --> 04:29:17,696 INTERACTIONS AND LET'S SEE 5940 04:29:17,696 --> 04:29:20,332 HERE -- SO AMY AND I AND I KNOW 5941 04:29:20,332 --> 04:29:22,001 I'M SHORT ON TIME BUT I HAVE TO 5942 04:29:22,001 --> 04:29:22,468 TELL YOU, THE SCHOOL 5943 04:29:22,468 --> 04:29:32,711 PRESENTATIONS. 5944 04:29:37,416 --> 04:29:40,085 WE HAVE A SCHOOL ASSEMBLY ON THE 5945 04:29:40,085 --> 04:29:42,955 IDD UNIT AND I CALL IT LOOKING 5946 04:29:42,955 --> 04:29:45,324 OUT FOR THE UNDERDOG. 5947 04:29:45,324 --> 04:29:48,027 NOT BECAUSE OF THE NEGATIVE 5948 04:29:48,027 --> 04:29:49,361 CONNOTATION OF BEING AN UNDERDOG 5949 04:29:49,361 --> 04:29:51,263 BUT YOU COULD BE OR I COULD BE 5950 04:29:51,263 --> 04:29:51,597 THE UNDERDOG. 5951 04:29:51,597 --> 04:29:53,766 BE KIND. 5952 04:29:53,766 --> 04:29:55,134 DON'T BE THE BULLY. 5953 04:29:55,134 --> 04:29:56,936 THAT'S A PRESENTATION THAT 5954 04:29:56,936 --> 04:29:58,571 COUPLES WITH US HAVING THE 5955 04:29:58,571 --> 04:30:01,173 PRESENTATION FOR INDIVIDUALS WHO 5956 04:30:01,173 --> 04:30:04,610 HAVE DISABILITIES AND MAKING 5957 04:30:04,610 --> 04:30:06,011 SURE THAT EVERYONE KNOWS THEY'RE 5958 04:30:06,011 --> 04:30:14,253 NOT ALONE ON THIS JOURNEY. 5959 04:30:14,253 --> 04:30:17,389 THERE'S MORE OF OUR TRAFFIC STOP 5960 04:30:17,389 --> 04:30:18,591 CLASSES. 5961 04:30:18,591 --> 04:30:19,992 THIS YOUNG MAN HAS AUTISM AND IS 5962 04:30:19,992 --> 04:30:23,162 ALSO NAVIGATING THIS WORLD AND 5963 04:30:23,162 --> 04:30:25,164 HAS WORKED WITH ME AS A 5964 04:30:25,164 --> 04:30:28,734 SELF-ADVOCATE BUT APPLYING TO 5965 04:30:28,734 --> 04:30:33,639 COLLEGES NOW. 5966 04:30:33,639 --> 04:30:35,541 THAT'S PRETTY SAW SOME AND WE'LL 5967 04:30:35,541 --> 04:30:40,980 BE HELPING ON THAT ROUTE TOO. 5968 04:30:40,980 --> 04:30:51,490 WE WORK DISCLOSURE AND PEOPLE 5969 04:30:54,727 --> 04:30:56,962 MAY DISCLOSE INFORMATION TO THEM 5970 04:30:56,962 --> 04:30:58,764 WHY IT'S IMPORTANT WHEN HAVE YOU 5971 04:30:58,764 --> 04:30:59,832 INTERACTION WITH LAW ENFORCEMENT 5972 04:30:59,832 --> 04:31:01,400 AND YOU CAN HAVE AN INDIVIDUAL 5973 04:31:01,400 --> 04:31:04,803 APPROACHING YOU IN THE 5974 04:31:04,803 --> 04:31:07,306 COMMUNITY. 5975 04:31:07,306 --> 04:31:09,375 I THINK I STOOD UP HERE JUST TO 5976 04:31:09,375 --> 04:31:14,713 SHOW OFF AND SAY HOW MUCH I LOVE 5977 04:31:14,713 --> 04:31:17,016 MY JOB AND HOW PROUD I AM OF THE 5978 04:31:17,016 --> 04:31:18,717 OFFICERS IN MONTGOMERY COUNTY. 5979 04:31:18,717 --> 04:31:19,685 THAT'S ALL I HAVE. 5980 04:31:19,685 --> 04:31:22,254 I LOVE SEEING ALL THE FACES. 5981 04:31:22,254 --> 04:31:24,323 THERE'S MY E-MAIL AND YOU CAN 5982 04:31:24,323 --> 04:31:26,191 E-MAIL ME AND MYSELF OR AMY WILL 5983 04:31:26,191 --> 04:31:27,660 GET BACK TO YOU. 5984 04:31:27,660 --> 04:31:29,361 LOVE YOU GUYS. 5985 04:31:29,361 --> 04:31:29,795 MWAH. 5986 04:31:29,795 --> 04:31:31,830 >> Josh: I WANT TO THANK YOU, 5987 04:31:31,830 --> 04:31:33,132 OFFICER REYES AND ALL THE 5988 04:31:33,132 --> 04:31:33,899 PRESENTERS. 5989 04:31:33,899 --> 04:31:35,301 WE'RE RUNNING BEHIND SO IN AN 5990 04:31:35,301 --> 04:31:37,236 EFFORT TO MAKE THAT UP, WE'RE 5991 04:31:37,236 --> 04:31:44,343 GOING TO TAKE A SHORT BREAK. 5992 04:31:44,343 --> 04:31:49,014 WE'LL START UP AT 10 OF SO FIVE 5993 04:31:49,014 --> 04:31:50,716 MINUTES LATE AND HOLD THE UNTIL 5994 04:31:50,716 --> 04:31:52,351 AFTER THE AFTERNOON'S PANEL. 5995 04:31:52,351 --> 04:31:54,320 SO IF YOU GOT QUESTIONS OR 5996 04:31:54,320 --> 04:31:55,721 COMMENTS YOU WANT TO MAKE, JOT 5997 04:31:55,721 --> 04:31:57,289 THEM DOWN SO YOU DON'T FORGET 5998 04:31:57,289 --> 04:31:57,923 AND SEE YOU BACK IN 10 MINUTES. 5999 04:31:57,923 --> 04:31:58,757 6000 04:32:07,899 --> 04:32:09,901 THANK YOU ALL FOR COMING BACK SO 6001 04:32:09,901 --> 04:32:15,373 QUICKLY AFTER A SHORT BREAK. 6002 04:32:15,373 --> 04:32:25,583 WE WANT TO MAKE SURE TO GET TO 6003 04:32:25,583 --> 04:32:27,585 THE NEXT PANEL AND HAVE TIME TO 6004 04:32:27,585 --> 04:32:31,189 DISCUSS AND SUSAN WILL BE 6005 04:32:31,189 --> 04:32:32,390 ORCHESTRATING THE NEXT GROUP. 6006 04:32:32,390 --> 04:32:36,327 >> Susan: THANK YOU, SO MUCH. 6007 04:32:36,327 --> 04:32:40,932 WE'RE LOOKING FORWARD TO THIS 6008 04:32:40,932 --> 04:32:42,567 COMMUNITY PANEL WE'LL BE DOING 6009 04:32:42,567 --> 04:32:45,236 THIS IN A Q&A FASHION AND WE 6010 04:32:45,236 --> 04:32:47,172 HAVE SOME WONDERFUL PRESENTER 6011 04:32:47,172 --> 04:32:48,239 PANELISTS ON THIS PANEL. 6012 04:32:48,239 --> 04:32:52,744 SO OUR FIRST PANELIST IS 6013 04:32:52,744 --> 04:33:03,354 DR. MARIA MERCEDES A VILA THE 6014 04:33:07,492 --> 04:33:11,529 DIRECTOR OF PEDIATRICS AND NEXT 6015 04:33:11,529 --> 04:33:17,936 IS LINDSEY NAEDER FOR AUTISM 6016 04:33:17,936 --> 04:33:21,806 SPEAKS AND A SIBLING OF AN 6017 04:33:21,806 --> 04:33:23,975 AUTISTIC PERSON AND NEXT IS 6018 04:33:23,975 --> 04:33:29,380 CAMILLE PROCTOR THE FOUNDER OF 6019 04:33:29,380 --> 04:33:30,548 THE PURPLE AUTISM FOUNDATION AND 6020 04:33:30,548 --> 04:33:35,220 THE MOTHER OF A SON ON THE 6021 04:33:35,220 --> 04:33:40,892 AUTISM SPECTRUM AND NEXT IS IS 6022 04:33:40,892 --> 04:33:49,167 AMANDA WROTEN AND THE FINAL PAM 6023 04:33:49,167 --> 04:33:51,069 PANELIST FOR THE AUTISTIC 6024 04:33:51,069 --> 04:33:52,503 SELF-ADVOCACY NETWORK AND AN 6025 04:33:52,503 --> 04:33:59,210 ADVOCATE AND FEEL FREE TO SHARE 6026 04:33:59,210 --> 04:33:59,844 ADDITIONAL DETAILS. 6027 04:33:59,844 --> 04:34:08,753 I'LL CONDUCT THIS BY ASKING A 6028 04:34:08,753 --> 04:34:09,387 SERIES OF QUESTIONS. 6029 04:34:09,387 --> 04:34:19,931 WE'LL START WITH THE QUESTIONS. 6030 04:34:20,665 --> 04:34:27,205 I'M GOING MARIA, LIBBED SI, CA 6031 04:34:27,205 --> 04:34:30,908 MERE AND AMANDA AND GREG. 6032 04:34:30,908 --> 04:34:32,210 MARIA, HI. 6033 04:34:32,210 --> 04:34:33,978 WHAT ARE THE MOST IMPORTANT LAW 6034 04:34:33,978 --> 04:34:35,046 ENFORCEMENT AND CRIMINAL JUSTICE 6035 04:34:35,046 --> 04:34:37,181 ISSUES YOU FEEL AFFECT THE 6036 04:34:37,181 --> 04:34:43,655 AUTISM COMMUNITY? 6037 04:34:43,655 --> 04:34:45,156 >> THANK YOU FOR INCLUDING THE 6038 04:34:45,156 --> 04:34:47,325 WORK WE'RE DOING IN VERMONT. 6039 04:34:47,325 --> 04:34:49,327 THE FIRST QUESTION AND MOST 6040 04:34:49,327 --> 04:34:51,229 IMPORTANT ISSUES OR PRESSING 6041 04:34:51,229 --> 04:34:55,199 ISSUES I THINK HEARING THE 6042 04:34:55,199 --> 04:34:57,268 PREVIOUS PANEL THEY TALKED ABOUT 6043 04:34:57,268 --> 04:35:00,605 THE KEY AREAS WE NEED TO 6044 04:35:00,605 --> 04:35:03,141 CONTINUE LOOKING AND THE LACK OF 6045 04:35:03,141 --> 04:35:07,111 TRAINING CONNECTED TO CHILD 6046 04:35:07,111 --> 04:35:08,913 DEVELOPMENT AND LOOK AT RACIAL 6047 04:35:08,913 --> 04:35:09,814 DISPARITY AND THE INTERSECTION 6048 04:35:09,814 --> 04:35:11,949 OF HEALTH AND MENTAL HEALTH 6049 04:35:11,949 --> 04:35:13,718 DISPARITIES WHEN THEY CONNECT 6050 04:35:13,718 --> 04:35:17,055 WITH OTHER SYSTEMS OF 6051 04:35:17,055 --> 04:35:17,355 OPPRESSION. 6052 04:35:17,355 --> 04:35:20,058 THE OTHER IS LACK OF TRAINING 6053 04:35:20,058 --> 04:35:21,826 CONNECTS TO LACK OF KNOWLEDGE OF 6054 04:35:21,826 --> 04:35:24,862 SOCIAL AND HISTORICAL CONTEXT IN 6055 04:35:24,862 --> 04:35:29,367 OUR SOCIETY. 6056 04:35:29,367 --> 04:35:31,369 LOOKING AT THE HISTORY OF 6057 04:35:31,369 --> 04:35:32,570 SYSTEMIC RACISM AND ISSUES 6058 04:35:32,570 --> 04:35:33,938 IMPACTING OUR COMMUNITIES. 6059 04:35:33,938 --> 04:35:35,707 I LIVE IN VERMONT. 6060 04:35:35,707 --> 04:35:37,975 THIS IS ONE OF THE WHITEST 6061 04:35:37,975 --> 04:35:40,678 STATES IN THE COUNTRY AND IT'S A 6062 04:35:40,678 --> 04:35:41,279 SMALL STATE. 6063 04:35:41,279 --> 04:35:43,548 WE ALL KNOW EACH OTHER WHEN WE 6064 04:35:43,548 --> 04:35:45,683 WORK IN LAW ENFORCEMENT LIKE I 6065 04:35:45,683 --> 04:35:47,218 DO AND SOMETIMES I HEAR PEOPLE 6066 04:35:47,218 --> 04:35:50,021 SAY IN VERMONT, WHAT IS 6067 04:35:50,021 --> 04:35:52,190 HAPPENING IN THAT STATE DOESN'T 6068 04:35:52,190 --> 04:35:52,757 HAPPEN HERE. 6069 04:35:52,757 --> 04:35:54,726 THIS IS IMPORTANT TO KEEP IN 6070 04:35:54,726 --> 04:35:56,194 MIND BECAUSE IT DOESN'T MATTER 6071 04:35:56,194 --> 04:35:57,829 WHETHER WE'RE IN VERMONT OR MORE 6072 04:35:57,829 --> 04:35:59,230 DIVERSE OR LARGER STATE IN THE 6073 04:35:59,230 --> 04:36:04,435 COUNTRY, EVERYBODY HAS TO HAVE 6074 04:36:04,435 --> 04:36:06,571 KNOWLEDGE ABOUT THAT TOOK PLACE 6075 04:36:06,571 --> 04:36:08,206 THAT IS IMPACTING THE COMMUNITY 6076 04:36:08,206 --> 04:36:13,177 AND IMPORTANT TO HIGHLIGHT 6077 04:36:13,177 --> 04:36:15,046 RELATED TO EDUCATION AND WORK 6078 04:36:15,046 --> 04:36:18,883 ING WITH FAMILIES AND OTHER IDD 6079 04:36:18,883 --> 04:36:21,552 WE HEAR CONSTANTLY FAMILIES ARE 6080 04:36:21,552 --> 04:36:23,688 EAGER TO SHARE THEIR STORIES AND 6081 04:36:23,688 --> 04:36:26,324 EXPERIENCES INTERACTING WITH LAW 6082 04:36:26,324 --> 04:36:27,225 ENFORCEMENT AND I THINK THAT'S 6083 04:36:27,225 --> 04:36:28,393 SOMETHING WE NEED TO CONTINUE 6084 04:36:28,393 --> 04:36:30,695 DOING HEARING THE VOICES OF THE 6085 04:36:30,695 --> 04:36:32,964 COMMUNITIES IN A MEANINGFUL WAY 6086 04:36:32,964 --> 04:36:35,233 AND AFFECT CHANGE AND IMPROVE 6087 04:36:35,233 --> 04:36:37,201 SYSTEMS CONNECTED THOSE 6088 04:36:37,201 --> 04:36:37,502 EXPERIENCES. 6089 04:36:37,502 --> 04:36:39,203 THANK YOU FOR THE FIRST 6090 04:36:39,203 --> 04:36:42,740 QUESTION. 6091 04:36:42,740 --> 04:36:47,378 >> THANK YOU SO MUCH, MERCEDES. 6092 04:36:47,378 --> 04:36:49,580 NEXT TO LINDSEY AND IF YOU NEED 6093 04:36:49,580 --> 04:36:52,283 ME TO REPEAT THE QUESTION JUST 6094 04:36:52,283 --> 04:36:52,450 ASK. 6095 04:36:52,450 --> 04:37:03,294 >> WE KNOW THE HIGHEST PROFILE 6096 04:37:03,294 --> 04:37:13,738 CASES -- THANK YOU, SUSAN AND 6097 04:37:14,038 --> 04:37:14,672 COMMITTEE. 6098 04:37:14,672 --> 04:37:17,375 WE KNOW FOR SURE THE HIGHEST 6099 04:37:17,375 --> 04:37:19,610 PROFILE CASES MAKE THE NEWS BUT 6100 04:37:19,610 --> 04:37:21,312 AT AUTISM SPEAKS OUR AUTISM 6101 04:37:21,312 --> 04:37:24,916 RESPONSE TEAM WHICH IS OUR AND 6102 04:37:24,916 --> 04:37:26,617 REFERRAL RESOURCE FIELDS 6103 04:37:26,617 --> 04:37:28,152 THOUSANDS OF REQUESTS SEEKING 6104 04:37:28,152 --> 04:37:29,821 SAFETY RESOURCES EVERY SINGLE 6105 04:37:29,821 --> 04:37:30,021 YEAR. 6106 04:37:30,021 --> 04:37:32,723 THE TOP NEEDS THAT WE SEE WITH 6107 04:37:32,723 --> 04:37:33,925 TO THE REQUESTS VERY FREQUENTLY 6108 04:37:33,925 --> 04:37:35,226 INVOLVE THE NEED FOR FIRST 6109 04:37:35,226 --> 04:37:37,128 RESPONDER TRAINING RESOURCES. 6110 04:37:37,128 --> 04:37:39,831 THE MOST COMMON REQUEST ARE FROM 6111 04:37:39,831 --> 04:37:41,766 PARENTS AND CAREGIVERS ASKING 6112 04:37:41,766 --> 04:37:45,236 THE QUESTION IN MY ZIP CODE ARE 6113 04:37:45,236 --> 04:37:49,807 THE FIRST RESPONDERS TRAINED 6114 04:37:49,807 --> 04:37:51,476 AND DO THEY KNOW ABOUT AUTISM 6115 04:37:51,476 --> 04:37:54,145 AND IF THEY'RE LUCKY THEY LIVE 6116 04:37:54,145 --> 04:37:56,581 IN A COUNTY AND HAVE OFFICER 6117 04:37:56,581 --> 04:37:58,850 REYES AT THEIR DISPOSAL BUT 6118 04:37:58,850 --> 04:38:00,551 OFTEN THEY DO NOT. 6119 04:38:00,551 --> 04:38:02,820 PROGRESS HAS BEEN MADE. 6120 04:38:02,820 --> 04:38:04,956 WE'RE SEEING PROMISING PRACTICES 6121 04:38:04,956 --> 04:38:08,059 AND BEST PRACTICES POPPING UP 6122 04:38:08,059 --> 04:38:10,628 BUT OFTEN LED BY ADVOCATES AND 6123 04:38:10,628 --> 04:38:13,998 INDIVIDUALS PARTIAL NATALLY 6124 04:38:13,998 --> 04:38:15,166 COMMITTED MEMBERS AND COMMUNITY 6125 04:38:15,166 --> 04:38:16,501 ORGANIZATION, MY COLLEAGUES 6126 04:38:16,501 --> 04:38:18,569 DOING GREAT WORK. 6127 04:38:18,569 --> 04:38:24,642 WE HAVEN'T SEEN IT SCALED TO 6128 04:38:24,642 --> 04:38:27,144 REPORT MY TEAM IS ANSWERING FROM 6129 04:38:27,144 --> 04:38:28,246 EVERY ZIP CODE AND THERE ARE 6130 04:38:28,246 --> 04:38:31,182 STANDARDS AND TRAINED OFFICERS 6131 04:38:31,182 --> 04:38:32,183 IN THE COMMUNITY. 6132 04:38:32,183 --> 04:38:32,517 >> THANK YOU. 6133 04:38:32,517 --> 04:38:38,189 CAMILLE PROCTOR. 6134 04:38:38,189 --> 04:38:42,693 >> FOR ME, THE MOST PRESSING 6135 04:38:42,693 --> 04:38:44,829 ISSUE IS THE KILLING OF BLACK 6136 04:38:44,829 --> 04:38:46,597 PEOPLE BY THE HANDS OF THE 6137 04:38:46,597 --> 04:38:47,532 POLICE. 6138 04:38:47,532 --> 04:38:51,802 OFFICER REYES, NO OFFENSE, 6139 04:38:51,802 --> 04:38:52,870 YOU'RE A GEM. 6140 04:38:52,870 --> 04:38:58,109 IF I COULD FEED YOU AFTER 6141 04:38:58,109 --> 04:38:59,911 MIDNIGHT AND YOU'D MULTIPLY I 6142 04:38:59,911 --> 04:39:01,679 WOULD BUT UNTIL WE ADDRESS THE 6143 04:39:01,679 --> 04:39:03,948 SYSTEMIC RACISM WE CANNOT 6144 04:39:03,948 --> 04:39:05,516 PROTECT THESE VULNERABLE PEOPLE 6145 04:39:05,516 --> 04:39:07,118 AT RISK DAILY BECAUSE OF THE 6146 04:39:07,118 --> 04:39:10,221 COLOR OF THEIR SKIN. 6147 04:39:10,221 --> 04:39:11,923 THEN IT'S COMPOUNDED BECAUSE 6148 04:39:11,923 --> 04:39:13,724 THEY ARE AUTISTIC AND HAVE 6149 04:39:13,724 --> 04:39:15,226 SENSORY ISSUES AND A MYRIAD OF 6150 04:39:15,226 --> 04:39:16,694 OTHER THINGS AND WE KEEP SAYING 6151 04:39:16,694 --> 04:39:18,029 TRAIN THE POLICE AND I DO 6152 04:39:18,029 --> 04:39:22,500 RESPECT THE POLICE BUT I THINK 6153 04:39:22,500 --> 04:39:25,169 SOME OF THE MONEY TRAINING THE 6154 04:39:25,169 --> 04:39:29,974 POLICE YOU SHOULD THROW AT THE 6155 04:39:29,974 --> 04:39:31,142 GRASSROOTS ORGANIZATIONS IN THE 6156 04:39:31,142 --> 04:39:33,044 COMMUNITIES TRAINING FAMILIES 6157 04:39:33,044 --> 04:39:35,212 AND WE NEED TO TRAIN THESE BLACK 6158 04:39:35,212 --> 04:39:36,213 AND BROWN PEOPLE HOW TO INTERACT 6159 04:39:36,213 --> 04:39:36,914 WITH THE POLICE. 6160 04:39:36,914 --> 04:39:38,215 NO ONE'S TALKED ABOUT THAT. 6161 04:39:38,215 --> 04:39:40,384 WE KEEP TALKING ABOUT TRAINING 6162 04:39:40,384 --> 04:39:40,618 POLICE. 6163 04:39:40,618 --> 04:39:41,886 THEY HAVE THAT AVAILABLE TO 6164 04:39:41,886 --> 04:39:43,187 THEM. 6165 04:39:43,187 --> 04:39:45,423 IT'S BEEN AVAILABLE TO THEM 6166 04:39:45,423 --> 04:39:47,224 FOREVER WEATHER OR NOT THEY'RE 6167 04:39:47,224 --> 04:39:52,496 UTILIZING IT THAT'S ON THEM. 6168 04:39:52,496 --> 04:39:58,636 ALL I KNOW IS THAT MAIN WAS 6169 04:39:58,636 --> 04:40:01,005 WALKING HOME FROM THE STORE FIT 6170 04:40:01,005 --> 04:40:07,612 IN A DESCRIPTION AND GOT TASED 6171 04:40:07,612 --> 04:40:09,413 AN ANOTHER MAN GOT KILLED IN HIS 6172 04:40:09,413 --> 04:40:09,981 OWN HOUSE. 6173 04:40:09,981 --> 04:40:12,116 THE PEOPLE LISTENING TO THIS AND 6174 04:40:12,116 --> 04:40:17,488 IN THIS ROOM, YOU ALL NEED TO 6175 04:40:17,488 --> 04:40:19,190 COME TOGETHER AND FIGHT TO HAVE 6176 04:40:19,190 --> 04:40:21,993 CRISIS INTERVENTION UNITS IN ALL 6177 04:40:21,993 --> 04:40:23,227 YOUR COMMUNITY BECAUSE POLICE 6178 04:40:23,227 --> 04:40:25,062 AREN'T CRISIS 6179 04:40:25,062 --> 04:40:25,496 INTERVENTIONALISTS. 6180 04:40:25,496 --> 04:40:35,840 THAT'S MY STATEMENT. 6181 04:40:42,213 --> 04:40:42,747 >> THANK YOU. 6182 04:40:42,747 --> 04:40:45,616 IT'S NOT THE MOUNTAIN BUT THE 6183 04:40:45,616 --> 04:40:47,284 PEBBLES AND IT'S NOT ONE THING, 6184 04:40:47,284 --> 04:40:48,619 IT'S NOT LAW ENFORCEMENT 6185 04:40:48,619 --> 04:40:51,589 TRAINING OR 9-8-8 ALL THE THINGS 6186 04:40:51,589 --> 04:40:53,391 WORK IN UNISON TOGETHER BECAUSE 6187 04:40:53,391 --> 04:40:55,926 A RISING TIDE LIFTS ALL BOATS. 6188 04:40:55,926 --> 04:40:57,161 FOR ME IT'S LOOKING AT THOSE 6189 04:40:57,161 --> 04:40:58,529 THINGS AND UNDERSTANDING 6190 04:40:58,529 --> 04:41:00,131 INDIVIDUALS OF AUTISM ARE SEVEN 6191 04:41:00,131 --> 04:41:01,232 TIMES MORE LIKELY TO BE VICTIM 6192 04:41:01,232 --> 04:41:03,367 OF A CRIME, 12 TIMES MORE LIKELY 6193 04:41:03,367 --> 04:41:04,902 TO BE INVOLVED IN THE CRIMINAL 6194 04:41:04,902 --> 04:41:06,103 JUSTICE SYSTEM WITHOUT INTENT 6195 04:41:06,103 --> 04:41:10,141 BEFORE WE ADD A RACIAL COMPONENT 6196 04:41:10,141 --> 04:41:10,641 TO CAMILLE'S POINTS. 6197 04:41:10,641 --> 04:41:11,275 IT'S THE TRAINING AND THE 6198 04:41:11,275 --> 04:41:21,585 CULTURE AROUND IT. 6199 04:41:25,289 --> 04:41:29,093 IS MY HUSBAND IS A POLICE 6200 04:41:29,093 --> 04:41:31,395 OFFICER AND I WAS ON A PANEL AND 6201 04:41:31,395 --> 04:41:37,201 I'M ON TO THE SPECTRUM AND WHEN 6202 04:41:37,201 --> 04:41:40,204 I HAD TO THE MOST PREPARED 6203 04:41:40,204 --> 04:41:43,207 PERSON IN FRONT OF ME BUT WHEN 6204 04:41:43,207 --> 04:41:49,513 WE STARTED DOING AUTISM-INFORMED 6205 04:41:49,513 --> 04:41:52,750 APPROACH A SINGLE MELT DOWN 6206 04:41:52,750 --> 04:41:54,385 CHANGED AND THE INFORMATION AND 6207 04:41:54,385 --> 04:41:55,186 CULTURE BUILT AROUND IT WAS SO 6208 04:41:55,186 --> 04:41:57,688 POWERFUL FOR US AS A FAMILY AND 6209 04:41:57,688 --> 04:41:59,323 I KNOW IT'S JUST ONE EXPERIENCE 6210 04:41:59,323 --> 04:42:01,258 OF AUTISM BUT IT CAN'T BE JUST 6211 04:42:01,258 --> 04:42:03,227 ONE ANSWER WITH JUST ONE 6212 04:42:03,227 --> 04:42:04,562 TRAINING OR ONE NUMBER OR JUST 6213 04:42:04,562 --> 04:42:06,931 ONE THING WE'RE LOOKING AT. 6214 04:42:06,931 --> 04:42:09,767 IT HAS TO BE CAMILLE'S POINT 6215 04:42:09,767 --> 04:42:11,502 ABOUT BRINGING IN RACIAL 6216 04:42:11,502 --> 04:42:12,970 DISPARITIES AND ALL THE THINGS 6217 04:42:12,970 --> 04:42:23,247 TO GET US THERE. 6218 04:42:32,089 --> 04:42:35,726 >> Susan: THANK YOU. 6219 04:42:35,726 --> 04:42:40,831 GREG ROBINSON. 6220 04:42:40,831 --> 04:42:45,469 >> MANY TIMES THE REAL SAFETY 6221 04:42:45,469 --> 04:42:49,206 RISK IS POSED AND ONE WAY TO 6222 04:42:49,206 --> 04:42:52,109 MINIMIZE THE VIOLENCE IS BY 6223 04:42:52,109 --> 04:42:53,377 LIMITING THE INTERACTION WITH 6224 04:42:53,377 --> 04:42:53,611 POLICE. 6225 04:42:53,611 --> 04:42:56,046 WHEN THERE ARE PUTTING IN PLACE 6226 04:42:56,046 --> 04:42:58,082 ALTERNATIVES TO POLICE FOR 6227 04:42:58,082 --> 04:43:00,484 BEHAVIORAL CRISES CAN BE A 6228 04:43:00,484 --> 04:43:01,252 CRITICAL ROLE IN THE 6229 04:43:01,252 --> 04:43:07,158 CONVERSATION. 6230 04:43:07,158 --> 04:43:08,959 WE ALSO HAVE OUTSTANDING 6231 04:43:08,959 --> 04:43:12,029 QUESTIONS ABOUT CIT AND 6232 04:43:12,029 --> 04:43:15,232 CO-RESPONSE MODELS WHETHER THEY 6233 04:43:15,232 --> 04:43:17,368 ACTUALLY DO THEY PRODUCE THE USE 6234 04:43:17,368 --> 04:43:19,570 OF FORCE IN POLICE INTERACTION. 6235 04:43:19,570 --> 04:43:20,638 >> Josh: MOVE THE MIC CLOSER TO 6236 04:43:20,638 --> 04:43:21,038 YOU. 6237 04:43:21,038 --> 04:43:24,542 >> WE HAVE QUESTIONS WHETHER CIT 6238 04:43:24,542 --> 04:43:26,677 AND CO-RESPONSE MODELS REDUCE 6239 04:43:26,677 --> 04:43:31,582 THE INCIDENTS OF USE OF FORCE. 6240 04:43:31,582 --> 04:43:33,450 WE WHERE POLICE ARE PRESENT ONE 6241 04:43:33,450 --> 04:43:36,320 OF THE FUNDAMENTAL RULES OF 6242 04:43:36,320 --> 04:43:38,022 POLICE, AGAIN, OFFICER REYES YOU 6243 04:43:38,022 --> 04:43:40,691 DO SEEM AMAZING, I DO RESPECT TE 6244 04:43:40,691 --> 04:43:41,592 WORK YOU DO. 6245 04:43:41,592 --> 04:43:43,727 I ALSO WANT TO KNOW YOU ARE HERE 6246 04:43:43,727 --> 04:43:46,263 ARMED BECAUSE YOU'RE ON DUTY AND 6247 04:43:46,263 --> 04:43:48,432 THAT IS PART OF POLICE PRESENCE 6248 04:43:48,432 --> 04:43:50,367 WHEN YOU'RE PRESENT ON A SCENE 6249 04:43:50,367 --> 04:43:52,102 THE POSSIBILITY OF USE OF FORCE 6250 04:43:52,102 --> 04:43:52,903 IS PRESENT WITH YOU. 6251 04:43:52,903 --> 04:43:53,971 THAT'S SOMETHING THAT I THINK WE 6252 04:43:53,971 --> 04:43:56,473 DO NEED TO ENGAGE WITH WHEN WE 6253 04:43:56,473 --> 04:43:57,474 APPROACH THESE AND TALK ABOUT 6254 04:43:57,474 --> 04:43:59,543 HOW TO FIND ALTERNATIVES TO 6255 04:43:59,543 --> 04:43:59,810 POLICING. 6256 04:43:59,810 --> 04:44:01,545 ANOTHER THING I WANT TO RAISE 6257 04:44:01,545 --> 04:44:02,947 HERE IS ANOTHER ISSUE THAT HAS 6258 04:44:02,947 --> 04:44:04,949 BEEN RAISED TO US BY THE 6259 04:44:04,949 --> 04:44:07,051 COMMUNITY AROUND POLICING AND 6260 04:44:07,051 --> 04:44:12,623 SAFETY IS THE USE OF IDD MARKERS 6261 04:44:12,623 --> 04:44:21,165 AND DATABASES AS A FORM OF 6262 04:44:21,165 --> 04:44:23,500 DISCLOSURE AND THERE'S PRIVACY 6263 04:44:23,500 --> 04:44:25,236 CONCERNS RAISED HOW THE 6264 04:44:25,236 --> 04:44:28,539 DATABASES ARE MAINTAINED AND 6265 04:44:28,539 --> 04:44:30,207 USED BY STATE AGENCIES IB 6266 04:44:30,207 --> 04:44:33,277 ADDITION TO THE FACT WHEN IT'S 6267 04:44:33,277 --> 04:44:36,480 AN I.D. MARKER IT'S AN AUTOMATIC 6268 04:44:36,480 --> 04:44:37,681 DISCLOSURE EVERY TIME THEY 6269 04:44:37,681 --> 04:44:39,216 PRESENT THEMSELVES IN A 6270 04:44:39,216 --> 04:44:40,618 COMMUNITY AND SHOW I.D. 6271 04:44:40,618 --> 04:44:43,220 GIVEN MANY IN THE COMMUNITIES 6272 04:44:43,220 --> 04:44:51,929 ARE ALSO ON THE LGBTQ SPECTRUM 6273 04:44:51,929 --> 04:44:54,098 AND CAN INFORMATION CAN BE USED 6274 04:44:54,098 --> 04:44:55,199 TO DENY RIGHTS. 6275 04:44:55,199 --> 04:44:57,635 THIS HAS BEEN RAISED TO OUR 6276 04:44:57,635 --> 04:44:58,702 ORGANIZATION THREE MANY VENUES 6277 04:44:58,702 --> 04:45:00,371 AND SOMETHING WE'RE ACTIVELY 6278 04:45:00,371 --> 04:45:01,438 LOOKING AT RELATED TO LAW 6279 04:45:01,438 --> 04:45:11,782 ENFORCEMENT AS WELL. 6280 04:45:16,720 --> 04:45:17,121 6281 04:45:17,121 --> 04:45:18,722 >> Susan: WHAT YOUR ORGANIZATION 6282 04:45:18,722 --> 04:45:22,092 DOING TO ADDRESS THESE ISSUES. 6283 04:45:22,092 --> 04:45:22,293 MARIA. 6284 04:45:22,293 --> 04:45:25,229 >> WE WERE ABLE TO A TRAINING 6285 04:45:25,229 --> 04:45:27,765 MODEL THAT WAS CREATED FOR 6286 04:45:27,765 --> 04:45:29,166 HEALTH AND MENTAL HEALTH 6287 04:45:29,166 --> 04:45:31,302 PROVIDERS INTO WHAT IS THE FAIR 6288 04:45:31,302 --> 04:45:33,270 AND PARTIAL POLICE TRAINING IN 6289 04:45:33,270 --> 04:45:35,839 THE STATE OF VERMONT. 6290 04:45:35,839 --> 04:45:38,809 THE MODEL INCLUDES THE HISTORY 6291 04:45:38,809 --> 04:45:41,278 OF SYSTEMIC RACISM LOOKING AT 6292 04:45:41,278 --> 04:45:43,814 ISSUES OF HAVING DISABILITY AND 6293 04:45:43,814 --> 04:45:47,084 BEING FROM A RACIALLY DIVERSE 6294 04:45:47,084 --> 04:45:50,254 BACKGROUND AND LOOKING AT CHILD 6295 04:45:50,254 --> 04:45:52,189 DEVELOPMENT AND WORKING WITH LAW 6296 04:45:52,189 --> 04:45:54,858 ENFORCEMENT THERE WAS A LACK OF 6297 04:45:54,858 --> 04:45:57,928 KNOWLEDGE WITH THE FEDERAL LAWS 6298 04:45:57,928 --> 04:46:00,965 RELATED TO ACCESSIBILITY AND 6299 04:46:00,965 --> 04:46:05,970 ORDER 1316 THE LANGUAGE ACCESS 6300 04:46:05,970 --> 04:46:07,438 LEGISLATION RELATED TO PROVIDING 6301 04:46:07,438 --> 04:46:11,208 INTERPRETATION AND TRANSLATION 6302 04:46:11,208 --> 04:46:14,445 SERVICES FOR LIMITED ENGLISH 6303 04:46:14,445 --> 04:46:19,216 PROFICIENT POPULATION AND WE 6304 04:46:19,216 --> 04:46:20,484 INCORPORATE THE TRAINING THROUGH 6305 04:46:20,484 --> 04:46:22,486 OR WORK AND WERE ABLE TO TRAIN 6306 04:46:22,486 --> 04:46:23,787 ALL LAW ENFORCEMENT AGENCIES IN 6307 04:46:23,787 --> 04:46:27,157 THE STATE OF VERMONT AND 6308 04:46:27,157 --> 04:46:28,759 COLLECTED PRE AND POST DATA 6309 04:46:28,759 --> 04:46:30,260 RELATED TO THE TRAINING WE 6310 04:46:30,260 --> 04:46:30,894 OFFICER. 6311 04:46:30,894 --> 04:46:35,032 SEVEN YEARS AGO WE CREATED A 6312 04:46:35,032 --> 04:46:37,201 PROGRAM WITH COMMUNITY LEADERS 6313 04:46:37,201 --> 04:46:38,168 TO WORK WITH LAW ENFORCEMENT AND 6314 04:46:38,168 --> 04:46:47,211 PROGRAMS TO BE ABLE TO BRIDGE 6315 04:46:47,211 --> 04:46:49,213 THE CULTURAL DIVIDE AND REDUCE 6316 04:46:49,213 --> 04:46:51,582 AND PREVENT ARRESTS IN MANY 6317 04:46:51,582 --> 04:46:53,417 COMMUNITIES WE WORK WITH. 6318 04:46:53,417 --> 04:46:55,019 FINALLY, WE ALSO INTERVIEWED 6319 04:46:55,019 --> 04:46:58,355 MORE THAN 100 COMMUNITY MEMBERS 6320 04:46:58,355 --> 04:47:00,457 RELATED TO THEIR EXPERIENCES 6321 04:47:00,457 --> 04:47:01,592 WITH LAW ENFORCEMENT AND THE 6322 04:47:01,592 --> 04:47:04,061 CRIMINAL JUSTICE SYSTEM 6323 04:47:04,061 --> 04:47:06,930 INCLUDING THE COMMUNITY JUSTICE 6324 04:47:06,930 --> 04:47:09,666 CENTERS IN OUR STATE AND WHAT WE 6325 04:47:09,666 --> 04:47:11,602 FOUND WAS A LACK OF KNOWLEDGE 6326 04:47:11,602 --> 04:47:13,237 FROM THE COMMUNITY AROUND THE 6327 04:47:13,237 --> 04:47:17,007 ROLE OF LAW ENFORCEMENT AND THE 6328 04:47:17,007 --> 04:47:19,643 LIMITATIONS OF LAW ENFORCEMENT 6329 04:47:19,643 --> 04:47:21,612 INCLUDING NOT UNDERSTANDING 6330 04:47:21,612 --> 04:47:22,980 JUVENILE LAW FROM MANY OF THE 6331 04:47:22,980 --> 04:47:23,747 COMMUNITIES AND FROM LAW 6332 04:47:23,747 --> 04:47:25,215 ENFORCEMENT A LACK OF KNOWLEDGE 6333 04:47:25,215 --> 04:47:30,487 RELATED TO THE COMMUNITIES THE 6334 04:47:30,487 --> 04:47:31,955 CULTURAL PERSPECTIVES OF THE 6335 04:47:31,955 --> 04:47:33,724 COMMUNITY WE SERVE AND 6336 04:47:33,724 --> 04:47:36,460 DISCONNECT AND CREATE A BIGGER 6337 04:47:36,460 --> 04:47:37,161 DISCONNECT BETWEEN COMMUNITIES 6338 04:47:37,161 --> 04:47:37,594 AND LAW ENFORCEMENT. 6339 04:47:37,594 --> 04:47:41,565 THANK YOU. 6340 04:47:41,565 --> 04:47:46,570 >> THANK YOU. 6341 04:47:46,570 --> 04:47:56,880 >> NEXT, LINDSEY. 6342 04:48:30,681 --> 04:48:32,382 >> WE'RE TALKING ABOUT LAW 6343 04:48:32,382 --> 04:48:33,083 ENFORCEMENT AGENCIES AND 6344 04:48:33,083 --> 04:48:37,888 OFFICERS AND THAT IS ABSOLUTELY 6345 04:48:37,888 --> 04:48:38,355 SN 6346 04:48:38,355 --> 04:48:39,556 SOMETHING WE NEED TO ADDRESS 6347 04:48:39,556 --> 04:48:40,424 WEATHER THROUGH CRISIS 6348 04:48:40,424 --> 04:48:40,757 INTERACTIONS. 6349 04:48:40,757 --> 04:48:43,060 WE SAW THE STATISTICS WHERE IT'S 6350 04:48:43,060 --> 04:48:45,996 FIVE TIMES OR SEVEN TIMES MORE 6351 04:48:45,996 --> 04:48:47,131 LIKELY TO INTERACT WITH LAW 6352 04:48:47,131 --> 04:48:49,600 ENFORCEMENT BUT WE NEED TO THINK 6353 04:48:49,600 --> 04:48:51,502 ABOUT SCHOOL RESOURCE OFFICERS 6354 04:48:51,502 --> 04:48:56,073 AND EMERGENCY ROOM PERSONNEL, 6355 04:48:56,073 --> 04:48:59,209 EMTs, 9-1-1 TELECOM OPERATORS 6356 04:48:59,209 --> 04:49:01,211 AND I'M SURE EVERY PERSON HAS 6357 04:49:01,211 --> 04:49:02,779 ANOTHER SECTOR POPPING IN THEIR 6358 04:49:02,779 --> 04:49:05,382 MIND THAT HAVE TO OPERATE FOR 6359 04:49:05,382 --> 04:49:06,150 OUR COMMUNITY AS FIRST 6360 04:49:06,150 --> 04:49:06,450 RESPONDERS. 6361 04:49:06,450 --> 04:49:09,219 WE HAVE TO MAKE SURE TO HAVE 6362 04:49:09,219 --> 04:49:12,890 RESOURCES AND TOOLS TO OVER ALL 6363 04:49:12,890 --> 04:49:13,657 UNDERSTANDING AROUND AUTISM BUT 6364 04:49:13,657 --> 04:49:15,225 ALSO PUTTING THAT THROUGH THE 6365 04:49:15,225 --> 04:49:23,300 LENS OF SAFETY NEEDS. 6366 04:49:23,300 --> 04:49:24,735 >> Susan: CAMILLE. 6367 04:49:24,735 --> 04:49:29,940 >> ONE THING OUR ORGANIZATION 6368 04:49:29,940 --> 04:49:32,943 AND ENCOURAGE THOSE IN LAW 6369 04:49:32,943 --> 04:49:34,178 ENFORCEMENT TO PARTICIPATE UP 6370 04:49:34,178 --> 04:49:36,647 OUR PROGRAMMING, TO BE 6371 04:49:36,647 --> 04:49:37,514 VOLUNTEERS AND WE HAVE A PROGRAM 6372 04:49:37,514 --> 04:49:43,220 AND WE'LL PROBABLY START IT 6373 04:49:43,220 --> 04:49:44,688 AGAIN WHERE WE HAD LAW 6374 04:49:44,688 --> 04:49:51,461 ENFORCEMENT AND YOUTH WORK 6375 04:49:51,461 --> 04:49:53,263 TOGETHER AND WE WANTED TO 6376 04:49:53,263 --> 04:49:54,765 HUMANIZE OUR BOYS AND GIRLS. 6377 04:49:54,765 --> 04:49:57,167 WE WANTED THEM TO BE PEOPLE TO 6378 04:49:57,167 --> 04:49:57,668 THESE OFFICERS. 6379 04:49:57,668 --> 04:50:00,871 WE DOESN'T WANT THEM TO BE A 6380 04:50:00,871 --> 04:50:03,440 LIST OF MAY NOT MAKE EYE CONTACT 6381 04:50:03,440 --> 04:50:07,211 AND DO NOT DO THIS AND KNOW THE 6382 04:50:07,211 --> 04:50:11,215 INDIVIDUALS SO WHEN THEY WERE 6383 04:50:11,215 --> 04:50:21,758 OUT AND THEY DON'T LOOK AT THE 6384 04:50:32,369 --> 04:50:37,941 LIST OF THIS THAT BUT THE LOD 6385 04:50:37,941 --> 04:50:40,877 BODY LANGUAGE AND GIVE LAW 6386 04:50:40,877 --> 04:50:41,645 ENFORCEMENT A BETTER IDEAL 6387 04:50:41,645 --> 04:50:47,417 AUTISM IS A LINEAR AND NOT A ONE 6388 04:50:47,417 --> 04:50:57,694 SIZE FITS ALL AND STOP BEING 6389 04:50:57,694 --> 04:50:57,995 REACTIONARY. 6390 04:50:57,995 --> 04:50:59,229 >> IT'S NOT ONE THING BUT ALL 6391 04:50:59,229 --> 04:51:09,439 THE THINGS. 6392 04:51:50,414 --> 04:51:54,017 AND LEANN ARE LEAD PROVIDERS AND 6393 04:51:54,017 --> 04:51:55,252 IT'S AN INTERESTING EXPERIENCE 6394 04:51:55,252 --> 04:51:56,887 BECAUSE WE WORK WITH 60 SITES 6395 04:51:56,887 --> 04:51:58,822 ACROSS THE COUNTRY AND MANY ARE 6396 04:51:58,822 --> 04:52:01,258 LAW ENFORCEMENT AGENCIES AND 6397 04:52:01,258 --> 04:52:01,958 THEY EXPERIENCE THE DIFFERENCE 6398 04:52:01,958 --> 04:52:03,760 IN COMMUNITY WHERE THEY HAVE 6399 04:52:03,760 --> 04:52:05,128 TROUBLE GETTING TRACKING DEVICES 6400 04:52:05,128 --> 04:52:08,532 OUT BECAUSE OF THE MISTRUST. 6401 04:52:08,532 --> 04:52:10,167 WE'RE TRYING TO BRIDGE THE GAP 6402 04:52:10,167 --> 04:52:11,635 AND BUILD A TRUE COMMUNITY OF 6403 04:52:11,635 --> 04:52:11,902 PRACTICE. 6404 04:52:11,902 --> 04:52:14,104 IF YOU ASK ABOUT ONE SENTENCE 6405 04:52:14,104 --> 04:52:15,672 WE'RE TRYING TO MAKE SURE 6406 04:52:15,672 --> 04:52:16,840 EVERYONE GOES HOME SAFE AT NIGHT 6407 04:52:16,840 --> 04:52:18,975 WHETHER IT'S OFFICER REYES OR 6408 04:52:18,975 --> 04:52:20,610 CAMILLE'S SON OR ME OR MY 6409 04:52:20,610 --> 04:52:20,911 HUSBAND. 6410 04:52:20,911 --> 04:52:22,279 WE'RE TRYING TO MAKE SURE 6411 04:52:22,279 --> 04:52:23,747 EVERYBODY GOES HOME SAFE AT 6412 04:52:23,747 --> 04:52:24,848 NIGHT BECAUSE THAT'S WHAT 6413 04:52:24,848 --> 04:52:27,217 COMMUNITY MEANS AND WHAT WE WANT 6414 04:52:27,217 --> 04:52:30,187 TO BE A PART OF. 6415 04:52:30,187 --> 04:52:31,221 >> THANK YOU. 6416 04:52:31,221 --> 04:52:33,423 >> Susan: GREG. 6417 04:52:33,423 --> 04:52:37,227 >> SO WE ARE WE CAN GET YOU IN 6418 04:52:37,227 --> 04:52:40,931 THROUGH THE COALITIONS WE 6419 04:52:40,931 --> 04:52:42,065 PARTICIPATE IN. 6420 04:52:42,065 --> 04:52:44,067 BOTH WITH THE DISABILITY 6421 04:52:44,067 --> 04:52:46,269 COMMUNITY THROUGH INVERSION AND 6422 04:52:46,269 --> 04:52:47,437 CONSTITUENTS WITH DISABILITIES 6423 04:52:47,437 --> 04:52:48,972 AND THE LESION OF CONFERENCE. 6424 04:52:48,972 --> 04:52:53,176 A LOT OF OUR WORK IS AIMED AT 6425 04:52:53,176 --> 04:52:54,277 BRIDGING THE DISABILITY RIGHTS 6426 04:52:54,277 --> 04:52:58,181 AND DISABILITY JUSTICE 6427 04:52:58,181 --> 04:52:59,216 COMMUNITIES MAKE SURE WE ARE 6428 04:52:59,216 --> 04:53:01,251 REALLY RUN SAME DIRECTION ON 6429 04:53:01,251 --> 04:53:03,787 ISSUES OF POLICE VIOLENCE AND 6430 04:53:03,787 --> 04:53:04,621 MAKING SURE THAT THE COMMUNITY 6431 04:53:04,621 --> 04:53:08,992 IS WELL REPRESENTED AND WE'RE 6432 04:53:08,992 --> 04:53:10,494 ADDRESSING THE ISSUES AND WE ARE 6433 04:53:10,494 --> 04:53:13,897 MAKING SURE THAT RESPONSE 6434 04:53:13,897 --> 04:53:19,202 SYSTEMS ARE FULLY ACCESSIBLE TO 6435 04:53:19,202 --> 04:53:20,704 OUR COMMUNITIES INCLUDING SPEECH 6436 04:53:20,704 --> 04:53:22,572 OR MAY NEED ALTERNATIVES TO 6437 04:53:22,572 --> 04:53:22,806 CONTACT. 6438 04:53:22,806 --> 04:53:25,242 IN ADDITION, WE PRODUCE 6439 04:53:25,242 --> 04:53:28,044 RESOURCES FOR COMMUNITY MEMBERS 6440 04:53:28,044 --> 04:53:29,146 AROUND THE LEGAL SYSTEM AND 6441 04:53:29,146 --> 04:53:31,715 POLICE VIOLENCE AND WE HAD 6442 04:53:31,715 --> 04:53:33,517 RESOURCES ON THE CRIMINAL LEGAL 6443 04:53:33,517 --> 04:53:35,085 SYSTEM BROADLY AND POLICE 6444 04:53:35,085 --> 04:53:37,254 VIOLENCE AND THE PIPELINE AND 6445 04:53:37,254 --> 04:53:38,922 AUTISM AND SAFETY AND SEXUAL 6446 04:53:38,922 --> 04:53:39,322 VIOLENCE. 6447 04:53:39,322 --> 04:53:42,993 THIS IS AN AREA WHERE WE'RE 6448 04:53:42,993 --> 04:53:45,028 ALSO -- WE ALSO PUT PRIORITY IN 6449 04:53:45,028 --> 04:53:47,030 PRODUCING RESOURCES THAT CAN 6450 04:53:47,030 --> 04:53:48,064 EDUCATE OUR COMMUNITY BOTH ABOUT 6451 04:53:48,064 --> 04:53:53,804 THE ISSUES BROADLY AND WAYS TO 6452 04:53:53,804 --> 04:53:55,205 ADVOCATE FOR NEEDS. 6453 04:53:55,205 --> 04:53:56,706 >> Susan: THANK YOU. 6454 04:53:56,706 --> 04:54:00,577 AND MY THIRD QUESTION FOR THE 6455 04:54:00,577 --> 04:54:01,778 PANEL AND WE'LL START WITH 6456 04:54:01,778 --> 04:54:03,980 MERCEDES IS WHAT ARE SOME WAYS 6457 04:54:03,980 --> 04:54:04,881 YOU FEEL THE FEDERAL GOVERNMENT 6458 04:54:04,881 --> 04:54:08,919 OR STATE AND LOCAL AGENCIES AND 6459 04:54:08,919 --> 04:54:11,221 ORGANIZATIONS CAN HELP ADDRESS 6460 04:54:11,221 --> 04:54:13,290 THESE ISSUES? 6461 04:54:13,290 --> 04:54:14,224 >> THANK YOU. 6462 04:54:14,224 --> 04:54:18,395 I WANT TO START BY SAYING 6463 04:54:18,395 --> 04:54:21,097 LANGUAGE MATTERS AND IN 6464 04:54:21,097 --> 04:54:24,167 INTERACTIONS WITH LAW 6465 04:54:24,167 --> 04:54:26,102 ENFORCEMENT AND OUR WORK 6466 04:54:26,102 --> 04:54:27,604 TRAINING PROCEDURES INCLUDING 6467 04:54:27,604 --> 04:54:28,905 LANGUAGE TO INCLUDE DISABILITY 6468 04:54:28,905 --> 04:54:30,941 AND MENTAL HEALTH CONDITIONS AND 6469 04:54:30,941 --> 04:54:33,009 IMMIGRATION STATUS THAT ARE 6470 04:54:33,009 --> 04:54:34,945 OPPRESSIVE FOR THE COMMUNITY WE 6471 04:54:34,945 --> 04:54:35,412 SERVE. 6472 04:54:35,412 --> 04:54:36,880 LANGUAGE IS ONE THEIR KEY AREAS 6473 04:54:36,880 --> 04:54:39,182 THAT NEEDS TO BE ADDRESSED AND 6474 04:54:39,182 --> 04:54:41,318 UPDATED TO BE INCLUSIVE. 6475 04:54:41,318 --> 04:54:43,453 I HAVE GONE WITH FAMILIES WHO 6476 04:54:43,453 --> 04:54:44,921 HAVE CHILDREN WITH SPECIAL NEEDS 6477 04:54:44,921 --> 04:54:51,061 AND WITH ASC AND HERE WITH THE 6478 04:54:51,061 --> 04:54:52,829 CRIMINAL JUSTICE USING A WORD 6479 04:54:52,829 --> 04:54:54,231 THAT'S OPPRESSIVE FOR THE CHILD. 6480 04:54:54,231 --> 04:54:56,299 THAT BREAKS THE CONNECTION 6481 04:54:56,299 --> 04:54:57,801 BETWEEN THE COMMUNITY AND LAW 6482 04:54:57,801 --> 04:54:58,101 ENFORCEMENT. 6483 04:54:58,101 --> 04:54:59,536 WE TALK ABOUT TRAINING. 6484 04:54:59,536 --> 04:55:02,506 I WOULD SAY I'M AN ADVOCATE FOR 6485 04:55:02,506 --> 04:55:04,774 BEST PRACTICE TRAINING MODEL 6486 04:55:04,774 --> 04:55:08,912 THAT BUILDS ON KNOWLEDGE EVERY 6487 04:55:08,912 --> 04:55:09,579 YEAR. 6488 04:55:09,579 --> 04:55:10,914 I'VE SEEN THE TRAINING MODEL 6489 04:55:10,914 --> 04:55:12,215 HAVE THE SAME EVERY YEAR SO 6490 04:55:12,215 --> 04:55:14,584 NOTHING IS BEING LEARNED NEW 6491 04:55:14,584 --> 04:55:15,952 WITH THIS MODEL. 6492 04:55:15,952 --> 04:55:17,854 ADVOCATING FOR FUNDING THAT 6493 04:55:17,854 --> 04:55:19,990 ENCOURAGES PARTNERSHIPS WITH 6494 04:55:19,990 --> 04:55:21,057 COMMUNITIES TO BE ABLE TO HEAR 6495 04:55:21,057 --> 04:55:23,860 THE VOICES OF THE COMMUNITIES 6496 04:55:23,860 --> 04:55:27,664 AND FINALLY I WOULD SAY WE NEED 6497 04:55:27,664 --> 04:55:28,665 LEADERSHIP BUY-IN NOT IN WORDS 6498 04:55:28,665 --> 04:55:29,633 BUT IN ACTIONS. 6499 04:55:29,633 --> 04:55:32,135 WE NEED ACTIONS FROM LEADERSHIP 6500 04:55:32,135 --> 04:55:36,506 TO ADVOCATE FOR CHILDREN AND WE 6501 04:55:36,506 --> 04:55:41,912 ALSO NEEDLECATION -- NEED 6502 04:55:41,912 --> 04:55:46,983 FUNDING ALLOCATED TO FUND WORK 6503 04:55:46,983 --> 04:55:51,721 IN THIS COMMUNITY. 6504 04:55:51,721 --> 04:55:55,191 >> WE SUPPORT THE LAW AND THE 6505 04:55:55,191 --> 04:55:57,460 NEW PROGRAM CAN CONTINUE AND 6506 04:55:57,460 --> 04:55:58,862 HOPEFULLY IN THE FUTURE EXPAND. 6507 04:55:58,862 --> 04:56:01,331 WE LIKE TO SEE SIMILAR EFFORTS 6508 04:56:01,331 --> 04:56:03,533 INCLUDE MORE COMMUNITY PARTNERS 6509 04:56:03,533 --> 04:56:05,969 AND MORE OF THE PROMISING 6510 04:56:05,969 --> 04:56:08,438 PRACTICES THAT THE RECIPIENTS OF 6511 04:56:08,438 --> 04:56:10,540 THOSE FUNDING STREAMS ARE 6512 04:56:10,540 --> 04:56:10,807 RECEIVING. 6513 04:56:10,807 --> 04:56:13,310 WE DO SEE A GREAT OPPORTUNITY 6514 04:56:13,310 --> 04:56:16,146 FOR THE INTERSECTIONAL WORK 6515 04:56:16,146 --> 04:56:18,815 WHETHER WITH MENTAL HEALTH 6516 04:56:18,815 --> 04:56:19,816 PARTNERS THROUGH THE RACIAL LENS 6517 04:56:19,816 --> 04:56:22,118 AND OTHER DISABILITIES THAT CAN 6518 04:56:22,118 --> 04:56:24,254 COME TOGETHER AND WHEN YOU'RE 6519 04:56:24,254 --> 04:56:25,555 CONVENING A STAKEHOLDER GROUP 6520 04:56:25,555 --> 04:56:28,224 YOU CAN IDENTIFY UNIVERSAL 6521 04:56:28,224 --> 04:56:30,126 PRACTICES THAT CAN BE APPLIES TO 6522 04:56:30,126 --> 04:56:31,861 THE CRISIS INTERVENTION TRAINING 6523 04:56:31,861 --> 04:56:33,597 MODEL THAT COULD THEN BE APPLIED 6524 04:56:33,597 --> 04:56:43,974 AND SCALED NATIONALLY. 6525 04:56:48,178 --> 04:56:49,813 YOU CAN HAVE AUTISTIC PEOPLE, 6526 04:56:49,813 --> 04:56:52,248 THEIR FAMILIES AND CAREGIVERS 6527 04:56:52,248 --> 04:56:53,450 BRING THEIR SAFETY PLANS. 6528 04:56:53,450 --> 04:56:54,651 WE'VE GOT GREAT RESOURCES. 6529 04:56:54,651 --> 04:56:56,953 YOU CAN DOWNLOAD TO CREATE 6530 04:56:56,953 --> 04:56:57,887 CRISIS PLANS AND CREATE SAFETY 6531 04:56:57,887 --> 04:57:03,493 PLANS THAT WILL GROW ALONG WITH 6532 04:57:03,493 --> 04:57:04,928 YOU THROUGHOUT THE LIFE SPAN AND 6533 04:57:04,928 --> 04:57:06,396 THE CHILD'S NEEDS WON'T BE THE 6534 04:57:06,396 --> 04:57:09,199 SAME AS ADULT NEEDS AND YOU 6535 04:57:09,199 --> 04:57:11,768 DON'T OUTGROW YOUR AUTISM AND 6536 04:57:11,768 --> 04:57:13,036 THOUGH YOUR CHILD HAS BEEN 6537 04:57:13,036 --> 04:57:16,373 RAISED IN A COMMUNITY AND FEEL 6538 04:57:16,373 --> 04:57:17,307 COMFORTABLE THE LAW ENFORCEMENT 6539 04:57:17,307 --> 04:57:19,209 KNOWS THEM AND MAYBE THEY'LL 6540 04:57:19,209 --> 04:57:22,212 DROVE OR BE LIVING INDEPENDENTLY 6541 04:57:22,212 --> 04:57:24,280 OR HAVE A TOUGH TIME IN A 6542 04:57:24,280 --> 04:57:26,082 GROCERY STORE. 6543 04:57:26,082 --> 04:57:28,118 PROMOTING OPPORTUNITIES THATHILL 6544 04:57:28,118 --> 04:57:30,053 THOSE COMMUNITY-CENTERED 6545 04:57:30,053 --> 04:57:31,221 PROGRAMS WILL SORT OUT SOME 6546 04:57:31,221 --> 04:57:36,159 OPPORTUNITIES WE NEED TO SEE IN 6547 04:57:36,159 --> 04:57:37,894 LEVERAGING THESE INTERSECTIONAL 6548 04:57:37,894 --> 04:57:38,161 PROGRAMS. 6549 04:57:38,161 --> 04:57:39,229 >> Susan: THANK YOU. 6550 04:57:39,229 --> 04:57:49,205 CAMILLE. 6551 04:57:49,205 --> 04:57:54,210 >> I THINK IT'S VERY IMPORTANT 6552 04:57:54,210 --> 04:57:55,612 WE WORK WITH COMMUNITY 6553 04:57:55,612 --> 04:57:56,046 ORGANIZATION. 6554 04:57:56,046 --> 04:57:59,215 I ALSO WOULD LIKE TO GENTLY 6555 04:57:59,215 --> 04:58:00,417 REMIND PEOPLE THAT THE 6556 04:58:00,417 --> 04:58:01,951 DISABILITY MOVEMENT WAS BIRTHED 6557 04:58:01,951 --> 04:58:09,793 FROM THE CIVIL RIGHTS MOVEMENT. 6558 04:58:09,793 --> 04:58:12,328 FOR SOME REASON WE'VE FORGOTTEN 6559 04:58:12,328 --> 04:58:14,197 ALL ABOUT THAT AND FORGOT ABOUT 6560 04:58:14,197 --> 04:58:15,598 THE SECTION OF PEOPLE THAT ARE 6561 04:58:15,598 --> 04:58:17,100 BLACK AND THEY'RE NOT SERVED AND 6562 04:58:17,100 --> 04:58:18,635 WE KEEP FORGETTING ABOUT THEM 6563 04:58:18,635 --> 04:58:19,903 AND I'M NOT TRYING TO CHANGE THE 6564 04:58:19,903 --> 04:58:20,904 SUBJECT BUT IT'S VERY IMPORTANT 6565 04:58:20,904 --> 04:58:23,006 WE TAKE A LOOK AT OURSELVES AND 6566 04:58:23,006 --> 04:58:24,708 GO BACK TO WHERE DID WE COME 6567 04:58:24,708 --> 04:58:27,243 FROM, AGAIN, WE CAME FROM THE 6568 04:58:27,243 --> 04:58:28,812 CIVIL RIGHTS MOVEMENT. 6569 04:58:28,812 --> 04:58:30,013 THERE'S NO REASON WHY A BLACK 6570 04:58:30,013 --> 04:58:33,550 CHILD IS BEING BORN RIGHT NOW 6571 04:58:33,550 --> 04:58:35,485 AND HIS FATHER OR MOTHER WILL BE 6572 04:58:35,485 --> 04:58:38,621 TALKING TO HIM AS AN INFANT 6573 04:58:38,621 --> 04:58:40,790 TELLING HIM WHAT HE CANNOT DO IN 6574 04:58:40,790 --> 04:58:42,392 THIS UNITED STATES. 6575 04:58:42,392 --> 04:58:45,261 I THINK THAT IS IMPORTANT WE DO 6576 04:58:45,261 --> 04:58:47,197 TAKE A LOOK AT THESE UNDER 6577 04:58:47,197 --> 04:58:48,965 SERVED COMMUNITIES AND WORK 6578 04:58:48,965 --> 04:58:49,632 TOWARDS CREATING BETTER PROGRAMS 6579 04:58:49,632 --> 04:58:50,967 BECAUSE THEY ARE THE ONES WHO 6580 04:58:50,967 --> 04:58:53,403 ARE THE MOST ADVERSELY AFFECTED. 6581 04:58:53,403 --> 04:58:56,272 YES, I CARE ABOUT EVERYONE'S 6582 04:58:56,272 --> 04:58:59,476 LIFE BUT WHEN I TELL YOU 6583 04:58:59,476 --> 04:59:00,610 STATISTICALLY PEOPLE WITH 6584 04:59:00,610 --> 04:59:01,277 DISABILITIES THAT ARE DEAD 6585 04:59:01,277 --> 04:59:03,613 BECAUSE OF A MISUNDERSTANDING 6586 04:59:03,613 --> 04:59:07,717 ARE PEOPLE OF COLOR. 6587 04:59:07,717 --> 04:59:09,586 VERY RARELY AND WHEN YOU DO HEAR 6588 04:59:09,586 --> 04:59:13,256 ABOUT SOMEONE THAT IS NOT A 6589 04:59:13,256 --> 04:59:16,459 PERSON OF COLOR, IT IS 6590 04:59:16,459 --> 04:59:16,726 MAGNIFIED. 6591 04:59:16,726 --> 04:59:19,529 THAT MAKES ME ANGRY OFTEN 6592 04:59:19,529 --> 04:59:21,131 BECAUSE FOR THAT ONE CHILD 6593 04:59:21,131 --> 04:59:25,268 THERE'S PROBABLY 10 BLACK OR 6594 04:59:25,268 --> 04:59:26,136 BROWN CHILDREN THAT EXPERIENCE 6595 04:59:26,136 --> 04:59:33,643 SOMETHING SIMILAR OR WORSE. 6596 04:59:33,643 --> 04:59:35,979 >> Susan: THANK YOU, CAMILLE. 6597 04:59:35,979 --> 04:59:36,246 AMANDA. 6598 04:59:36,246 --> 04:59:37,981 >> ALSO, DR. DANIELS THIS CHAIR 6599 04:59:37,981 --> 04:59:39,215 IS A NICE START. 6600 04:59:39,215 --> 04:59:41,451 IF YOU ASK ME WHAT THE CAN DO, 6601 04:59:41,451 --> 04:59:43,920 IT'S NICE TO BE INCLUDED IN 6602 04:59:43,920 --> 04:59:44,387 THESE CONVERSATIONS. 6603 04:59:44,387 --> 04:59:52,061 WE GREATLY VALUE THIS AND THE 6604 04:59:52,061 --> 04:59:52,829 RECIPIENTS WOULD LOVE TO 6605 04:59:52,829 --> 04:59:53,696 PARTICIPATE MORE. 6606 04:59:53,696 --> 04:59:55,565 IT'S A GREAT PLATFORM TO THANK 6607 04:59:55,565 --> 04:59:55,799 YOU. 6608 04:59:55,799 --> 04:59:58,101 THERE'S A COUPLE AREAS AND I 6609 04:59:58,101 --> 04:59:59,002 THINK WE HEARD THEM THROUGHOUT 6610 04:59:59,002 --> 04:59:59,636 THE DAY. 6611 04:59:59,636 --> 05:00:01,271 ONE IS A GENERAL LACK OF DATA. 6612 05:00:01,271 --> 05:00:04,073 I COME FROM A PR BACKGROUND. 6613 05:00:04,073 --> 05:00:05,775 I'M PREPPING TALK POINTS AND 6614 05:00:05,775 --> 05:00:07,143 LOOKING FOR DATA AND IT DOESN'T 6615 05:00:07,143 --> 05:00:07,510 EXIST. 6616 05:00:07,510 --> 05:00:09,412 I ASK MY HUSBAND WHO'S A POLICE 6617 05:00:09,412 --> 05:00:11,581 OFFICER AND SAID IT'S NOT LISTED 6618 05:00:11,581 --> 05:00:14,117 ON THE UNIFORM PRIME REPORTING. 6619 05:00:14,117 --> 05:00:18,021 WE LOOK AT A ONE IN 36 DIAGNOSIS 6620 05:00:18,021 --> 05:00:20,056 RATE AND LOOK AT REPORTING, WE 6621 05:00:20,056 --> 05:00:21,257 SHOULD GET DISABILITY AND AUTISM 6622 05:00:21,257 --> 05:00:23,660 RELATED INFORMATION BUT IF IT'S 6623 05:00:23,660 --> 05:00:26,796 NOT IN UNIFORM CRIME REPORTING 6624 05:00:26,796 --> 05:00:31,367 WE'RE NOT GOING TO SEE IT 6625 05:00:31,367 --> 05:00:36,239 BECAUSEFUL -- BECAUSE UNTIL 6626 05:00:36,239 --> 05:00:38,007 THERE'S SUPPORT TO GET THE DATA 6627 05:00:38,007 --> 05:00:39,309 WE WILL NOT HAVE THAT DATA. 6628 05:00:39,309 --> 05:00:41,311 BEYOND THAT, FUNDING STATE 6629 05:00:41,311 --> 05:00:43,146 DEVELOPMENT CRISIS UNITS WE 6630 05:00:43,146 --> 05:00:45,181 TALKED ABOUT THAT BUT I WANT TO 6631 05:00:45,181 --> 05:00:47,550 ECHO THAT ALSO WITH WE HAVE TO 6632 05:00:47,550 --> 05:00:50,086 CONTINUE THAT COMMUNITY OF 6633 05:00:50,086 --> 05:00:50,353 PRACTICE. 6634 05:00:50,353 --> 05:00:51,988 THE FOUNDATION HAD A CALL FOR 6635 05:00:51,988 --> 05:00:53,890 SERVICE OVER THE HOLIDAYS THAT 6636 05:00:53,890 --> 05:00:55,458 RELATED IN A FATAL SHOOTING THAT 6637 05:00:55,458 --> 05:00:57,427 WAS NOT AUTISM RELATED BUT NOT A 6638 05:00:57,427 --> 05:00:59,729 MENTAL HEALTH PHONE CALL AT THE 6639 05:00:59,729 --> 05:01:02,165 TIME THE CHIEF LISTED IN THE 6640 05:01:02,165 --> 05:01:03,533 PAPER CALLED FOR THE THINGS 6641 05:01:03,533 --> 05:01:04,200 THROUGH THE COMMUNITY SERVICE 6642 05:01:04,200 --> 05:01:06,202 BOARD AND THEY DIDN'T COME TO 6643 05:01:06,202 --> 05:01:07,804 HELP BOUGHT THEY DIDN'T FEEL 6644 05:01:07,804 --> 05:01:08,071 QUALIFIED. 6645 05:01:08,071 --> 05:01:09,472 THAT KICKS THE BALL BACK IN 6646 05:01:09,472 --> 05:01:11,140 THEIR COURT AND WHAT I MEAN BY 6647 05:01:11,140 --> 05:01:12,876 IT'S NOT ONE THING, IT'S ALL OF 6648 05:01:12,876 --> 05:01:14,577 THE THINGS. 6649 05:01:14,577 --> 05:01:18,615 SO IF WE ONLY DID A MOEM MOBILE 6650 05:01:18,615 --> 05:01:19,449 HEALTH CRISIS UNIT AND DON'T 6651 05:01:19,449 --> 05:01:20,917 TRAINING OFFICERS, WHAT HAPPENS 6652 05:01:20,917 --> 05:01:22,051 WHEN THAT FALLS A PART? 6653 05:01:22,051 --> 05:01:27,190 AND LIKE EVERYBODY ELSE, WE NEED 6654 05:01:27,190 --> 05:01:27,490 MORE MONEY. 6655 05:01:27,490 --> 05:01:29,392 EVERYTHING IS UNDER FUNDED NOT 6656 05:01:29,392 --> 05:01:30,727 JUST MEANINGFUL TRAINING BUT TO 6657 05:01:30,727 --> 05:01:32,762 WORK WITH DEPARTMENTS THAT DON'T 6658 05:01:32,762 --> 05:01:38,434 HAVE AN OFFICER REYES TO 6659 05:01:38,434 --> 05:01:40,436 IMPLEMENT IT AND GIVE FIM 6660 05:01:40,436 --> 05:01:41,070 FAMILIES AN OPPORTUNITY TO KNOW 6661 05:01:41,070 --> 05:01:43,206 WHAT TO DO IN A TRAFFIC STOP 6662 05:01:43,206 --> 05:01:44,741 WHICH IS STRESSFUL FOR ANYBODY 6663 05:01:44,741 --> 05:01:46,442 REGARDLESS OF AUTISM AND 6664 05:01:46,442 --> 05:01:49,178 SUPPORTING THINGS LIBE THE SAFE 6665 05:01:49,178 --> 05:01:50,313 INTERACTIONS ACT REQUIRING 6666 05:01:50,313 --> 05:01:52,482 OFFICERS TO RECEIVE MEANINGFUL 6667 05:01:52,482 --> 05:01:53,950 TRAINING THAT INCLUDES AUTISM 6668 05:01:53,950 --> 05:01:54,817 SPECIFIC DE-ESCALATION 6669 05:01:54,817 --> 05:01:55,218 PRACTICES. 6670 05:01:55,218 --> 05:01:57,320 AND THEN THE LAST THING FOR ME 6671 05:01:57,320 --> 05:02:00,823 IS 9-8-8 BUT IT'S A TWO-WAY 6672 05:02:00,823 --> 05:02:03,393 STREET NOT JUST KNOWING 9-8-8 6673 05:02:03,393 --> 05:02:04,260 EXISTS AND HAVING SUPPORT TO 6674 05:02:04,260 --> 05:02:08,698 KNOW WHAT TO DO NEXT SO TRAINING 6675 05:02:08,698 --> 05:02:09,198 GOES BOTH WAYS. 6676 05:02:09,198 --> 05:02:09,632 >> Susan: THANK YOU. 6677 05:02:09,632 --> 05:02:12,402 GREG. 6678 05:02:12,402 --> 05:02:15,204 >> FIRST, I WANT TO THANK MY 6679 05:02:15,204 --> 05:02:18,808 FELLOW PANELISTS FOR RAISING THE 6680 05:02:18,808 --> 05:02:19,876 ISSUES WHEN IT COMES TO 6681 05:02:19,876 --> 05:02:20,143 TRAINING. 6682 05:02:20,143 --> 05:02:23,646 I THINK AT THE DISPATCH LEVEL IS 6683 05:02:23,646 --> 05:02:25,248 WHERE A LOT OF DECISIONS ARE 6684 05:02:25,248 --> 05:02:27,350 MADE IN TERMS OF WHO AND HOW 6685 05:02:27,350 --> 05:02:29,285 THEY RESPOND THAT IMPACT HOW 6686 05:02:29,285 --> 05:02:30,887 PEOPLE EXPERIENCE EMERGENCIES 6687 05:02:30,887 --> 05:02:33,089 AND THAT CAN RANGE FROM WHETHER 6688 05:02:33,089 --> 05:02:35,158 POLICE OFFICERS ARE APPROPRIATE 6689 05:02:35,158 --> 05:02:36,893 FOR DISPATCH AND WHETHER SIRENS 6690 05:02:36,893 --> 05:02:37,527 ARE APPROPRIATE. 6691 05:02:37,527 --> 05:02:41,698 IT'S A CRITICAL PIECE. 6692 05:02:41,698 --> 05:02:48,171 I ALSO WANT TO SORT OF BACK UP A 6693 05:02:48,171 --> 05:02:49,539 LITTLE BIT AND TALK ABOUT AGAIN 6694 05:02:49,539 --> 05:02:51,407 POLICE VIOLENCE IMPACTS PEOPLE'S 6695 05:02:51,407 --> 05:02:52,575 ABILITY TO LIVE IN THE COMMUNITY 6696 05:02:52,575 --> 05:02:54,243 AND MOVE ABOUT THEIR COMMUNITY 6697 05:02:54,243 --> 05:02:56,512 TO INTERACT WITH THEIR COMMUNITY 6698 05:02:56,512 --> 05:02:57,580 AND FEEL SAFE. 6699 05:02:57,580 --> 05:03:00,917 I -- WE'VE TALKED ABOUT OTHER 6700 05:03:00,917 --> 05:03:01,117 CASES. 6701 05:03:01,117 --> 05:03:04,887 I WANTED TO MENTION THE CASE OF 6702 05:03:04,887 --> 05:03:13,196 CHARLES KINSEY A SUPPORT WORKER 6703 05:03:13,196 --> 05:03:15,365 AND RIO SOTO WHERE HE WAS IN A 6704 05:03:15,365 --> 05:03:17,467 GROUP HOME AND LEFT THE GROUP 6705 05:03:17,467 --> 05:03:19,268 HOME AND THE SUPPORT WORKER 6706 05:03:19,268 --> 05:03:22,605 FOUND HIM BUT IN THE MEANTIME 6707 05:03:22,605 --> 05:03:29,379 THERE WAS A POLICE REPORT THE 6708 05:03:29,379 --> 05:03:31,247 METAL REPORTED IN HIS HAND WAS A 6709 05:03:31,247 --> 05:03:34,450 GUN AND WHILE MR. SOTO WAS NOT 6710 05:03:34,450 --> 05:03:35,918 HARMED IT WASN'T FOR LACK OF 6711 05:03:35,918 --> 05:03:37,754 TRYING THE POLICE SHOT THE CARE 6712 05:03:37,754 --> 05:03:43,192 WORKER IN THE LEG ACCIDENTALLY. 6713 05:03:43,192 --> 05:03:49,232 I THINK INFORMATION I THINK 6714 05:03:49,232 --> 05:03:51,100 AGAIN SPEAKS TO WHO IS PART OF 6715 05:03:51,100 --> 05:03:54,303 THE RESPONSE TEAM AND WHAT THEY 6716 05:03:54,303 --> 05:03:59,942 KNOW AND HOW THE COMPETENCY IN 6717 05:03:59,942 --> 05:04:01,644 DISPATCH AND RESPONSE. 6718 05:04:01,644 --> 05:04:02,478 ADDRESSING, WONDERING MAKES ME 6719 05:04:02,478 --> 05:04:04,480 WANT TO BACK UP AND TALK ABOUT 6720 05:04:04,480 --> 05:04:07,150 COMMUNITY LIVING MORE BROADLY. 6721 05:04:07,150 --> 05:04:09,352 WE NEED MORE ROBUST SYSTEM 6722 05:04:09,352 --> 05:04:10,686 INCLUDING MORE ROBUST FUNDING 6723 05:04:10,686 --> 05:04:12,522 FROM COMMUNITY SERVICES TO 6724 05:04:12,522 --> 05:04:13,556 ENSURE PEOPLE HAVE DIRECT 6725 05:04:13,556 --> 05:04:15,091 SUPPORT THEY NEED IF THEY NEED 6726 05:04:15,091 --> 05:04:16,392 ONE-ON-ONE SUPPORT AND HAVE THAT 6727 05:04:16,392 --> 05:04:19,195 SUPPORT AND THAT ITSELF CAN 6728 05:04:19,195 --> 05:04:22,331 PREVENT SOME OF THIS. 6729 05:04:22,331 --> 05:04:24,367 I THINK WE NEED TO -- ENSURE 6730 05:04:24,367 --> 05:04:27,603 PEOPLE HAVE THE RESOURCES THEY 6731 05:04:27,603 --> 05:04:29,539 NEED ACROSS SYSTEM WIDE AND THIS 6732 05:04:29,539 --> 05:04:32,942 IS A PLACE WHERE WE NEED MORE 6733 05:04:32,942 --> 05:04:35,178 FUNDING BUT WE ALSO NEED MORE 6734 05:04:35,178 --> 05:04:36,813 FUNDING WHERE THE UNMET NEED 6735 05:04:36,813 --> 05:04:38,848 EXISTS AND WE HAVE GAPS AND THE 6736 05:04:38,848 --> 05:04:40,516 OTHER THING WE HAVE NOT TALKED 6737 05:04:40,516 --> 05:04:42,051 ON THE PANEL AS MUCH AS ABOUT 6738 05:04:42,051 --> 05:04:44,187 ACCESS TO JUSTICE BUT I DO THINK 6739 05:04:44,187 --> 05:04:46,589 ONE CRITICAL PIECE WHEN WE ARE 6740 05:04:46,589 --> 05:04:47,423 TALKING ABOUT JUSTICE SYSTEMS IS 6741 05:04:47,423 --> 05:04:49,892 MAKING SURE PEOPLE HAVE THE 6742 05:04:49,892 --> 05:04:51,194 RESOURCES THEY NEED FOR 6743 05:04:51,194 --> 05:04:53,796 ASSESSMENT AND ACCOMMODATION IF 6744 05:04:53,796 --> 05:04:55,932 THEY'RE JUSTICE INVOLVED WHILE 6745 05:04:55,932 --> 05:04:57,500 WE GO OVER THE STATISTICS AROUND 6746 05:04:57,500 --> 05:05:01,270 PEOPLE IN PRISON AND JAIL, 6747 05:05:01,270 --> 05:05:03,473 THERE'S ALSO AN UNDER DIAGNOSIS 6748 05:05:03,473 --> 05:05:06,109 PROBLEM IN THE SYSTEMS AND THAT 6749 05:05:06,109 --> 05:05:09,545 WE HAVE A PUBLIC DEFENSE SYSTEM 6750 05:05:09,545 --> 05:05:12,648 RADICALLY UNDER FUND, UNDER 6751 05:05:12,648 --> 05:05:14,650 RESOURCED AND OFTEN DON'T HAVE 6752 05:05:14,650 --> 05:05:16,586 TIMES TO GET PEOPLE ASSESSED AND 6753 05:05:16,586 --> 05:05:18,221 ACCOMMODATED APPROPRIATELY AND 6754 05:05:18,221 --> 05:05:19,388 THAT IMPEDES PEOPLE'S ABILITY TO 6755 05:05:19,388 --> 05:05:21,624 DEFEND THEMSELVES IN COURT IF 6756 05:05:21,624 --> 05:05:22,291 THEY'RE JUSTICE INVOLVED AND 6757 05:05:22,291 --> 05:05:23,960 THAT FOR US IS A HUGE ISSUE. 6758 05:05:23,960 --> 05:05:28,931 I WOULD ALSO LIKE TO SAY AS MY 6759 05:05:28,931 --> 05:05:31,534 TIME WRAPS UP HERE THAT I THINK 6760 05:05:31,534 --> 05:05:35,204 ONE FEAR WE HAVE AROUND 6761 05:05:35,204 --> 05:05:37,173 SEGREGATED LEGAL SYSTEMS AND 6762 05:05:37,173 --> 05:05:40,343 EVEN WITHIN 9-8-8 THEY DON'T 6763 05:05:40,343 --> 05:05:42,111 TRACK TO INSTITUTIONALIZATION. 6764 05:05:42,111 --> 05:05:43,779 IF PEOPLE ARE GETTING EMERGENCY 6765 05:05:43,779 --> 05:05:46,215 CRISIS RESPONSE AND THAT DOES 6766 05:05:46,215 --> 05:05:48,217 NOT BECOME INDEFINITE 6767 05:05:48,217 --> 05:05:50,086 HOSPITALIZATION AND ONE LAST 6768 05:05:50,086 --> 05:05:52,321 INCIDENT I'LL RAISE HERE I'M A 6769 05:05:52,321 --> 05:05:53,322 GAMER SO THIS IS SOMETHING THAT 6770 05:05:53,322 --> 05:05:56,125 CAME ON MY RADAR THROUGH VIDEO 6771 05:05:56,125 --> 05:05:57,560 GAMES BUT THERE WAS SOMEBODY IN 6772 05:05:57,560 --> 05:06:01,264 THE U.K. WHO HACKED AND RELEASED 6773 05:06:01,264 --> 05:06:02,465 DEVELOPMENT OF A VIDEO GAME THAT 6774 05:06:02,465 --> 05:06:07,203 IS A BIG DEAL AND WAS SENTENCED 6775 05:06:07,203 --> 05:06:10,473 TO INDEFINITE SECURE HOSPITAL 6776 05:06:10,473 --> 05:06:10,773 CONFINEMENT. 6777 05:06:10,773 --> 05:06:13,276 AND THE REASON GIVEN WAS HIS 6778 05:06:13,276 --> 05:06:19,015 PROFOUND AUTISM. 6779 05:06:19,015 --> 05:06:24,453 THIS IS DUE PROCESS AND THIS IS 6780 05:06:24,453 --> 05:06:25,454 A CASE WHERE SOMEBODY DID 6781 05:06:25,454 --> 05:06:27,223 SOMETHING I WOULD BE THE BEGIN 6782 05:06:27,223 --> 05:06:32,929 TO KNOW HOW TO DO AND HE SAID HE 6783 05:06:32,929 --> 05:06:35,598 WOULD DO IT AGAIN AND THAT TO ME 6784 05:06:35,598 --> 05:06:37,333 I READ THE LANCET ARTICLE. 6785 05:06:37,333 --> 05:06:40,570 I DON'T KNOW HOW THAT MEETS THE 6786 05:06:40,570 --> 05:06:41,804 DEFINITION OF PROFOUND AUTISM 6787 05:06:41,804 --> 05:06:43,206 AND MAKES ME WORRIED HOW 6788 05:06:43,206 --> 05:06:53,416 DEFINITIONS ARE USED. 6789 05:06:53,416 --> 05:06:53,883 >> 6790 05:06:53,883 --> 05:06:55,218 >> Susan: THANK YOU SO MUCH TO 6791 05:06:55,218 --> 05:06:57,353 OUR PANELISTS FOR ANSWERING SOME 6792 05:06:57,353 --> 05:06:59,222 OF THESE THOUGHT PROVOKING 6793 05:06:59,222 --> 05:07:01,924 QUESTIONS AND LOOK FORWARD TO 6794 05:07:01,924 --> 05:07:03,226 INTERACTING WITH YOU IN THE Q&A 6795 05:07:03,226 --> 05:07:04,193 AND WITH PREVIOUS PANELISTS 6796 05:07:04,193 --> 05:07:06,529 SINCE WE DIDN'T HAVE TIME FOR 6797 05:07:06,529 --> 05:07:06,829 Q&A EARLIER. 6798 05:07:06,829 --> 05:07:08,197 THANK YOU SO MUCH AND I WILL 6799 05:07:08,197 --> 05:07:10,566 TURN IT OVER TO DR. GORDON TO 6800 05:07:10,566 --> 05:07:13,502 HELP MODERATE IT AND ALSO HELP 6801 05:07:13,502 --> 05:07:14,203 ASSIST. 6802 05:07:14,203 --> 05:07:14,904 >> Josh: THANK YOU. 6803 05:07:14,904 --> 05:07:18,808 WE'RE GOING TO IT UP FOR 6804 05:07:18,808 --> 05:07:19,375 QUESTIONS OR COMMENTS FROM 6805 05:07:19,375 --> 05:07:24,046 MEMBERS OF THE COMMITTEE. 6806 05:07:24,046 --> 05:07:25,281 THANKS, EVERYONE WHO PRESENTED 6807 05:07:25,281 --> 05:07:31,621 TODAY. 6808 05:07:31,621 --> 05:07:33,422 >> IT WAS A RICH CONVERSATION 6809 05:07:33,422 --> 05:07:35,091 GIVING ME A LOT OF TO THINK 6810 05:07:35,091 --> 05:07:36,759 ABOUT INCLUDING MANY IN THE 6811 05:07:36,759 --> 05:07:37,026 COMMITTEE. 6812 05:07:37,026 --> 05:07:40,129 I LOVE THE IDEA OF A PROACTIVE 6813 05:07:40,129 --> 05:07:41,097 APPROACH VERSUS REACTIVE 6814 05:07:41,097 --> 05:07:43,866 APPROACH AND I WANT TO QUOTE YOU 6815 05:07:43,866 --> 05:07:47,036 AND SAY IT'S NOT ONE THING BUT 6816 05:07:47,036 --> 05:07:47,803 ALL THE THINGS. 6817 05:07:47,803 --> 05:07:53,609 IN THINKING ABOUT THAT THERE'S 6818 05:07:53,609 --> 05:07:55,611 CONVERSATION ABOUT TRAINING 6819 05:07:55,611 --> 05:07:56,779 OFFICERS WHICH IS GREAT. 6820 05:07:56,779 --> 05:07:58,614 EVERYBODY HAS SAID THAT'S A 6821 05:07:58,614 --> 05:07:59,949 GREAT THING BUT HOW -- WHAT ARE 6822 05:07:59,949 --> 05:08:03,019 THE OTHER STEPS WE NEED TO TAKE? 6823 05:08:03,019 --> 05:08:06,322 WE HEARD A LOT OF THINGS SHARED 6824 05:08:06,322 --> 05:08:06,555 HERE. 6825 05:08:06,555 --> 05:08:08,424 MY QUESTION TO -- I WOULD LOVE 6826 05:08:08,424 --> 05:08:09,325 TO HEAR FROM EVERYONE. 6827 05:08:09,325 --> 05:08:13,195 I DON'T KNOW IF THERE'S TIME BUT 6828 05:08:13,195 --> 05:08:15,197 WHAT'S THE KEY TAKEAWAYS YOU 6829 05:08:15,197 --> 05:08:16,465 WANT INDIVIDUALS AND FAMILIES TO 6830 05:08:16,465 --> 05:08:19,201 KNOW AS THEY LEARN ABOUT 6831 05:08:19,201 --> 05:08:20,202 NAVIGATING THE CRIMINAL JUSTICE 6832 05:08:20,202 --> 05:08:20,436 SYSTEM? 6833 05:08:20,436 --> 05:08:22,371 IF SOMEONE IS JUST STARTING TO 6834 05:08:22,371 --> 05:08:23,873 THINK ABOUT MY SON WHO IS NOW 6835 05:08:23,873 --> 05:08:27,243 20, ONE THING I DID FOR HIM WAS 6836 05:08:27,243 --> 05:08:30,613 I HAD AN IEP GOAL AND HE LEARNED 6837 05:08:30,613 --> 05:08:33,215 HOW TO TAKE HIS I.D. OUT OF HIS 6838 05:08:33,215 --> 05:08:36,252 WALLET AND LITERALLY SAY, BEFORE 6839 05:08:36,252 --> 05:08:38,487 HE TOUCHES IT, I HAVE MY I.D. 6840 05:08:38,487 --> 05:08:39,955 CAN I SHOW YOU. 6841 05:08:39,955 --> 05:08:43,192 THIS IS SOMETHING WE DID 6842 05:08:43,192 --> 05:08:46,095 INDIVIDUALLY. 6843 05:08:46,095 --> 05:08:49,699 WE NEED AN APPROACH ALL OVER BUT 6844 05:08:49,699 --> 05:08:52,101 I'M THINKING ABOUT INDIVIDUALS 6845 05:08:52,101 --> 05:08:56,105 FAMILIES WHO NEED HELP IN THIS 6846 05:08:56,105 --> 05:08:56,472 MOMENT. 6847 05:08:56,472 --> 05:08:57,940 SO THINKING ABOUT WHAT YOU 6848 05:08:57,940 --> 05:09:01,177 SHARED TODAY AND ALL THE AMAZING 6849 05:09:01,177 --> 05:09:04,513 RESOURCES AND THE THOUGHTS WHAT 6850 05:09:04,513 --> 05:09:06,882 IS ONE KEY TAKEAWAY THAT 6851 05:09:06,882 --> 05:09:09,652 INDIVIDUALS AND FAMILIES CAN 6852 05:09:09,652 --> 05:09:10,886 UTILIZE RIGHT NOW. 6853 05:09:10,886 --> 05:09:12,221 >> Josh: THANKS FOR THAT 6854 05:09:12,221 --> 05:09:15,191 QUESTION AND I'LL USE THE 6855 05:09:15,191 --> 05:09:17,159 CHAIR'S PREROGATIVE TO ASK 6856 05:09:17,159 --> 05:09:18,427 SPECIFIC PEOPLE TO ANSWER THAT 6857 05:09:18,427 --> 05:09:20,796 AND LAURIE CAN YOU ANSWER IN TWO 6858 05:09:20,796 --> 05:09:21,197 SENTENCES? 6859 05:09:21,197 --> 05:09:25,434 IF NOT, THAT'S FINE. 6860 05:09:25,434 --> 05:09:26,001 >> 6861 05:09:26,001 --> 05:09:27,937 >> TO ANSWER YOUR QUESTION 6862 05:09:27,937 --> 05:09:29,138 QUICKLY, EVERYONE KNOWS I'M 6863 05:09:29,138 --> 05:09:30,473 LONGWINDED SO THIS IS 6864 05:09:30,473 --> 05:09:32,408 CHALLENGING FOR ME TO LET YOU 6865 05:09:32,408 --> 05:09:33,042 KNOW. 6866 05:09:33,042 --> 05:09:36,278 THAT'S ALREADY MY TWO SENTENCE. 6867 05:09:36,278 --> 05:09:39,348 WHAT WE DO AND I'M WITH YOU. 6868 05:09:39,348 --> 05:09:42,318 MORE NEEDS TO THE DONE IN THE 6869 05:09:42,318 --> 05:09:43,085 INTERACTIONS WITH INDIVIDUALS 6870 05:09:43,085 --> 05:09:46,589 HAVING THAT INTERACTION WITH LAW 6871 05:09:46,589 --> 05:09:47,056 ENFORCEMENT. 6872 05:09:47,056 --> 05:09:50,226 WE TALK ABOUT SELF-DISCLOSURE IF 6873 05:09:50,226 --> 05:09:52,027 YOU HAVE AN INTERACTION WITH LAW 6874 05:09:52,027 --> 05:09:57,032 ENFORCEMENT WHAT SHOULD YOU DO? 6875 05:09:57,032 --> 05:09:59,435 CALM HANDS AND HERE'S THE THING, 6876 05:09:59,435 --> 05:10:04,407 I GET PUSHBACK ON WHY ARE YOU 6877 05:10:04,407 --> 05:10:06,275 TEACHING INDIVIDUALS IT SHOULD 6878 05:10:06,275 --> 05:10:09,645 BE OFFICERS AND IT HAS EVERYONE. 6879 05:10:09,645 --> 05:10:11,514 THE CAREGIVER, POLICE OFFICER, 6880 05:10:11,514 --> 05:10:12,615 EVERYBODY HAS TO BE A PART. 6881 05:10:12,615 --> 05:10:14,650 WHATEVER YOU WANT TO DO, LET'S 6882 05:10:14,650 --> 05:10:15,651 DO IT. 6883 05:10:15,651 --> 05:10:21,791 I'M HAPPY TO INSKRVITE YOU TO C 6884 05:10:21,791 --> 05:10:24,360 HEAR ME SPEAK TO A GROUP AND 6885 05:10:24,360 --> 05:10:25,995 COME WATCH WHEN WE PRESENT TO 6886 05:10:25,995 --> 05:10:28,063 INDIVIDUALS ABOUT HAVING 6887 05:10:28,063 --> 05:10:30,065 INTERACTIONS WITH LAW 6888 05:10:30,065 --> 05:10:30,366 ENFORCEMENT. 6889 05:10:30,366 --> 05:10:32,935 >> Josh: MARIA I DON'T KNOW IF 6890 05:10:32,935 --> 05:10:34,737 YOU'RE DOING THAT IN VERMONT. 6891 05:10:34,737 --> 05:10:35,871 DO YOU HAVE SOMETHING TO ADD? 6892 05:10:35,871 --> 05:10:40,409 >> I WOULD SAY WHAT WE GENERALLY 6893 05:10:40,409 --> 05:10:43,446 TELL COMMUNITIES AND FAMILIES IS 6894 05:10:43,446 --> 05:10:46,048 TO BE ABLE TO CONNECT 6895 05:10:46,048 --> 05:10:48,717 IMMEDIATELY WITH AN ADVOCATE. 6896 05:10:48,717 --> 05:10:50,119 MANY TIMES WHEN THERE'S 6897 05:10:50,119 --> 05:10:52,521 STRESSFUL SITUATIONS IT'S HARD 6898 05:10:52,521 --> 05:10:54,890 FOR FAMILIES TO BE ABLE TO MAKE 6899 05:10:54,890 --> 05:10:55,591 A DECISION IN THE MOMENT. 6900 05:10:55,591 --> 05:10:58,160 BE ABLE TO REACH OUT TO ONE OF 6901 05:10:58,160 --> 05:10:59,862 US AND BROKERS AND SOMEBODY IN 6902 05:10:59,862 --> 05:11:01,263 THE COMMUNITY WORKING WITH LAW 6903 05:11:01,263 --> 05:11:04,500 ENFORCEMENT TO MAKE THAT BRIDGE 6904 05:11:04,500 --> 05:11:06,402 SO WE CAN ADVOCATE ON THEIR 6905 05:11:06,402 --> 05:11:07,736 BEHALF BECAUSE THE STRESSFUL 6906 05:11:07,736 --> 05:11:13,609 SITUATIONS ARE HARD FOR FAMILIES 6907 05:11:13,609 --> 05:11:15,845 WE GET CALLS ALL THE TIME. 6908 05:11:15,845 --> 05:11:19,215 >> Josh: ANYONE WHO HAS A STRONG 6909 05:11:19,215 --> 05:11:23,752 ONE SENTENCE ANSWER? 6910 05:11:23,752 --> 05:11:26,722 >> IT'S LEANN WIN THE ARC, U.S. 6911 05:11:26,722 --> 05:11:28,057 ONE THING WE'VE BEEN TALKING 6912 05:11:28,057 --> 05:11:29,859 ABOUT IS CREATING A 6913 05:11:29,859 --> 05:11:31,227 CERTIFICATION PROGRAM FOR 6914 05:11:31,227 --> 05:11:32,094 JUSTICE ADVOCATES THAT WOULD BE 6915 05:11:32,094 --> 05:11:42,438 PART OF OUR NETWORK. 6916 05:11:44,940 --> 05:11:48,410 THERE COULD BE SOMEONE THERE YOU 6917 05:11:48,410 --> 05:11:50,646 WERE TALKING TO TALK ABOUT THE 6918 05:11:50,646 --> 05:11:51,514 ADVOCACY IN THE FRONT AND THAT'S 6919 05:11:51,514 --> 05:11:52,715 SOMETHING WE NEVER HAD IN THE 6920 05:11:52,715 --> 05:11:54,083 COUNTRY AND IT'S ABOUT TIME WE 6921 05:11:54,083 --> 05:11:55,518 GET MORE ORGANIZED ON THAT FRONT 6922 05:11:55,518 --> 05:11:59,221 SO I JUST WANTED TO MENTION 6923 05:11:59,221 --> 05:12:01,056 THAT. 6924 05:12:01,056 --> 05:12:03,959 >> Josh: I'LL MOVE ON FOR NOW 6925 05:12:03,959 --> 05:12:06,128 AND WE CAN COME BACK IF THERE'S 6926 05:12:06,128 --> 05:12:09,798 TIME AT THE END. 6927 05:12:09,798 --> 05:12:13,202 I'LL TURN TO IVANOVA FOR 6928 05:12:13,202 --> 05:12:13,502 COMMENT. 6929 05:12:13,502 --> 05:12:21,544 >> THIS IS IVANOVA SMITH AND MY 6930 05:12:21,544 --> 05:12:24,680 COMMENT IS FOR OFFICERS, HAVE 6931 05:12:24,680 --> 05:12:26,982 YOU HAD POSITIVE INTERACTIONS 6932 05:12:26,982 --> 05:12:31,720 WITH AUTISTIC PEOPLE AND ARE 6933 05:12:31,720 --> 05:12:33,055 THERE WAYS OFFICERS COULD HELP 6934 05:12:33,055 --> 05:12:34,223 AUTISTIC PEOPLE SOLVE THE 6935 05:12:34,223 --> 05:12:37,259 PROBLEM AND ONE EXAMPLE IS I 6936 05:12:37,259 --> 05:12:43,198 ACTUALLY HAD A POLICE INTER 6937 05:12:43,198 --> 05:12:46,502 ACTION A POLICE OFFICER WAS 6938 05:12:46,502 --> 05:12:47,202 CAUGHT DRAGGING ME AROUND AND 6939 05:12:47,202 --> 05:12:49,805 YELLING AT ME AND THAT WAS 6940 05:12:49,805 --> 05:12:50,039 SCARY. 6941 05:12:50,039 --> 05:12:51,974 I HAD A DIFFERENT INTERACTION 6942 05:12:51,974 --> 05:12:57,012 THAT WAS POSITIVE AND THEY WERE 6943 05:12:57,012 --> 05:13:00,115 ABLE TO HELP ME GET TO MY NEXT 6944 05:13:00,115 --> 05:13:02,084 BUS STOP AND I HAD A MELTDOWN 6945 05:13:02,084 --> 05:13:04,887 BECAUSE I MISSED MY BUS AND 6946 05:13:04,887 --> 05:13:05,921 INSTEAD THE OFFICER TRYING TO 6947 05:13:05,921 --> 05:13:08,023 ARREST ME SAID I CAN HELP YOU 6948 05:13:08,023 --> 05:13:09,792 GET TO THE NEXT BUS STOP. 6949 05:13:09,792 --> 05:13:11,093 I'LL DRIVE YOU TO YOUR NEXT BUS 6950 05:13:11,093 --> 05:13:12,461 STOP. 6951 05:13:12,461 --> 05:13:14,196 THAT WAS REALLY HELPFUL. 6952 05:13:14,196 --> 05:13:18,233 I'M WONDERING IF THERE'S MORE 6953 05:13:18,233 --> 05:13:20,469 WAYS OFFICERS CAN TROUBLE SHOOT 6954 05:13:20,469 --> 05:13:21,904 WITH AN AUTISTIC INDIVIDUAL AND 6955 05:13:21,904 --> 05:13:23,806 HELP THEM WHEN THEY'RE IN THAT 6956 05:13:23,806 --> 05:13:27,543 MELTDOWN AND SAY MAYBE THERE'S A 6957 05:13:27,543 --> 05:13:27,810 SOLUTION. 6958 05:13:27,810 --> 05:13:29,812 LET ME TALK SLOWLY TO THE PERSON 6959 05:13:29,812 --> 05:13:35,217 AND SAY CAN I HELP YOU OR WHAT'S 6960 05:13:35,217 --> 05:13:40,155 THE PROBLEM HERE AND TRYING TO 6961 05:13:40,155 --> 05:13:42,391 THINK OF A POSITIVE WAY TO HELP 6962 05:13:42,391 --> 05:13:43,626 THE PERSON AND I'VE HAD AN 6963 05:13:43,626 --> 05:13:44,760 OFFICER DO AND THAT IT'S BEEN 6964 05:13:44,760 --> 05:13:45,461 VERY POSITIVE. 6965 05:13:45,461 --> 05:13:49,064 I'M WONDERING IF THERE'S MORE 6966 05:13:49,064 --> 05:13:50,432 WAYS WE CAN DO THAT. 6967 05:13:50,432 --> 05:13:54,803 ALSO TO TRAIN OFFICERS IN 6968 05:13:54,803 --> 05:13:56,005 NON-SPEAKING COMMUNICATION AND 6969 05:13:56,005 --> 05:13:56,639 BEHAVIOR COMMUNICATION BECAUSE 6970 05:13:56,639 --> 05:13:58,173 THAT'S WHAT TRAINING IS LOOKING 6971 05:13:58,173 --> 05:13:59,241 WHEN HAVE YOU INDIVIDUALS THAT 6972 05:13:59,241 --> 05:14:02,678 ARE NON-SPEAKING AND CANNOT TELL 6973 05:14:02,678 --> 05:14:05,781 YOU WHAT THE NAME IS OR THINGS 6974 05:14:05,781 --> 05:14:08,884 LIKE THAT LIKE WE SHOULD BE ABLE 6975 05:14:08,884 --> 05:14:11,453 TO TRAIN OFFICERS AND BEING ABLE 6976 05:14:11,453 --> 05:14:14,823 TO KNOW A PERSON IS NON-SPEAKING 6977 05:14:14,823 --> 05:14:15,491 AND GET HOLD OF THE CAREGIVER. 6978 05:14:15,491 --> 05:14:25,668 THANK YOU. 6979 05:14:26,802 --> 05:14:27,269 >> Josh: THANK YOU. 6980 05:14:27,269 --> 05:14:31,240 >> HERE'S THE THING. 6981 05:14:31,240 --> 05:14:41,483 I'LL BE QUICK. 6982 05:14:43,552 --> 05:14:47,890 WE HAD POSITIVE OVERACTIONS AND 6983 05:14:47,890 --> 05:14:50,426 TRAINED OVER 5,000 OFFICERS OVER 6984 05:14:50,426 --> 05:14:56,365 THE COURSE OF 20 YEARS BUT IF 6985 05:14:56,365 --> 05:14:58,333 YOU EVER HAVE AN INTERACTION AND 6986 05:14:58,333 --> 05:15:01,270 REACH OUT WHY DID THIS HAPPEN, 6987 05:15:01,270 --> 05:15:03,072 I'M HERE FOR YOU. 6988 05:15:03,072 --> 05:15:04,540 YOU CAN REACH OUT. 6989 05:15:04,540 --> 05:15:06,108 MY E-MAIL IS RIGHT THERE AND 6990 05:15:06,108 --> 05:15:07,242 TALK ABOUT WHAT HAPPENED THE 6991 05:15:07,242 --> 05:15:08,877 GOOD AND BAD. 6992 05:15:08,877 --> 05:15:10,012 I'LL TAKE WHAT YOU SHARE AND 6993 05:15:10,012 --> 05:15:11,880 PASS IT ON. 6994 05:15:11,880 --> 05:15:12,114 PROMISE. 6995 05:15:12,114 --> 05:15:13,282 THANK YOU. 6996 05:15:13,282 --> 05:15:18,187 THANK YOU. 6997 05:15:18,187 --> 05:15:22,191 AMANDA AND GREG. 6998 05:15:22,191 --> 05:15:24,026 >> I VALUE YOU SHARING THAT SIDE 6999 05:15:24,026 --> 05:15:25,728 TO MAKE THE WORLD BETTER. 7000 05:15:25,728 --> 05:15:27,863 FROM THE NON-SPEAKING 7001 05:15:27,863 --> 05:15:29,798 PERSPECTIVE IF YOU GO TO THE 7002 05:15:29,798 --> 05:15:31,433 RESOURCES ON THE WEBSITE FOR THE 7003 05:15:31,433 --> 05:15:35,204 MEETING THE AUTISM SOCIETY OF 7004 05:15:35,204 --> 05:15:38,507 AMERICA HAS OUR FIRST RESPONDER 7005 05:15:38,507 --> 05:15:39,875 BOARDS UP IN ENGLISH AND SPANISH 7006 05:15:39,875 --> 05:15:41,410 AND THEY'RE FREE. 7007 05:15:41,410 --> 05:15:45,848 IF YOU'RE A LAW ENFORCEMENT 7008 05:15:45,848 --> 05:15:47,583 OFFICER ON THE PHONE AND SEND 7009 05:15:47,583 --> 05:15:48,584 THEM THE LINK TO THE FILE 7010 05:15:48,584 --> 05:15:51,186 BECAUSE IT'S A GREAT TOOL TO 7011 05:15:51,186 --> 05:15:53,088 PULL OUT AND IT SUPPORTS MANY 7012 05:15:53,088 --> 05:15:53,756 NEEDS. 7013 05:15:53,756 --> 05:15:55,858 IT COULD BE SOMEBODY WITH 7014 05:15:55,858 --> 05:15:57,259 ALZHEIMER'S, SOMEBODY WITH 7015 05:15:57,259 --> 05:15:58,894 DEMENTIA OR A LANGUAGE BARRIER 7016 05:15:58,894 --> 05:16:01,263 IN GENERAL BUT SPECIFICALLY FOR 7017 05:16:01,263 --> 05:16:02,898 AUTISM PHOTOS RELATED TO WHAT 7018 05:16:02,898 --> 05:16:04,466 LAW ENFORCEMENT MIGHT NEED TO 7019 05:16:04,466 --> 05:16:06,401 ASK OR INFORMATION THEY MIGHT 7020 05:16:06,401 --> 05:16:08,403 NEED AND I KNOW IT'S A LOT TO 7021 05:16:08,403 --> 05:16:09,972 CARRY AROUND DIFFERENT THINGS. 7022 05:16:09,972 --> 05:16:11,240 I HAVE THREE PAIRS OF HEADPHONES 7023 05:16:11,240 --> 05:16:13,308 IN THAT BAG BUT YOU CAN PRINT IT 7024 05:16:13,308 --> 05:16:15,210 OUT FOR YOURSELF. 7025 05:16:15,210 --> 05:16:18,614 I HAVE VERBAL SHUTDOWN DURING A 7026 05:16:18,614 --> 05:16:20,516 MELTDOWN AND HAVING THAT AT YOUR 7027 05:16:20,516 --> 05:16:22,618 DISPOSAL YOU CAN PULL OUT AND 7028 05:16:22,618 --> 05:16:25,320 POINT TO CAN START TO BRIDGE THE 7029 05:16:25,320 --> 05:16:28,490 GAP OF COMMUNICATION. 7030 05:16:28,490 --> 05:16:30,893 IT'S ON THE WEBSITE WITH ENGLISH 7031 05:16:30,893 --> 05:16:41,436 AND SPANISH AND CALL US AT 1- 7032 05:16:45,374 --> 05:16:45,641 80 7033 05:16:45,641 --> 05:16:45,941 800-SPANISH. 7034 05:16:45,941 --> 05:16:48,710 >> I LIKE THE PRESENTATION YOU 7035 05:16:48,710 --> 05:16:52,181 FEATURED I.D. BRACELETS AND I 7036 05:16:52,181 --> 05:16:53,382 MENTIONED I.D. FLAGS AND THINGS 7037 05:16:53,382 --> 05:16:55,050 PROPOSED. 7038 05:16:55,050 --> 05:16:56,585 THAT'S ONE ALTERNATIVE THAT 7039 05:16:56,585 --> 05:16:57,920 WORKS FOR PEOPLE WHO DON'T SPEAK 7040 05:16:57,920 --> 05:17:00,022 WHO DON'T NEED TO REACH FOR 7041 05:17:00,022 --> 05:17:01,423 THEIR WALLET WHICH CAN BE 7042 05:17:01,423 --> 05:17:03,058 POTENTIALLY PERCEIVED AS 7043 05:17:03,058 --> 05:17:06,328 THREATENING AND ALLOWS THEM TO 7044 05:17:06,328 --> 05:17:07,296 COMMUNICATE INFORMATION WITHOUT 7045 05:17:07,296 --> 05:17:07,563 SPEAKING. 7046 05:17:07,563 --> 05:17:09,865 I THINK THAT IS -- I WAS 7047 05:17:09,865 --> 05:17:11,834 GRATIFIED TO SEE THAT AS AN 7048 05:17:11,834 --> 05:17:13,468 EXAMPLE IN THE PRESENTATION 7049 05:17:13,468 --> 05:17:14,670 BECAUSE THAT IS SOMETHING THAT'S 7050 05:17:14,670 --> 05:17:17,139 COME UP FOR US THAT WE DISCUSSED 7051 05:17:17,139 --> 05:17:19,208 AND RECOMMENDED IN THE PAST. 7052 05:17:19,208 --> 05:17:29,484 >> Josh: SCOTT. 7053 05:17:31,019 --> 05:17:36,391 >> I WONDERED IF ANY PANELISTS 7054 05:17:36,391 --> 05:17:37,326 MIGHT HAVE SUGGESTIONS, IDEAS 7055 05:17:37,326 --> 05:17:40,662 HOW TO APPLY LESSONS LEARNED 7056 05:17:40,662 --> 05:17:44,366 FROM LOCAL AND STATE PERSPECTIVE 7057 05:17:44,366 --> 05:17:46,235 TO THE FEDERAL SYSTEM BECAUSE WE 7058 05:17:46,235 --> 05:17:50,505 DON'T HAVE REQUIREMENTS FOR 7059 05:17:50,505 --> 05:17:53,609 IMPROVING ACCESS AND ACCESS FOR 7060 05:17:53,609 --> 05:17:54,643 AUTISTIC PEOPLE AND SUPPORTING 7061 05:17:54,643 --> 05:17:56,311 PROGRAMS AND PRACTICES. 7062 05:17:56,311 --> 05:17:58,747 THE FEDERAL COURT SYSTEM IS NOT 7063 05:17:58,747 --> 05:18:02,284 REQUIRED UNDER ANY STATUTE TO 7064 05:18:02,284 --> 05:18:05,821 PROVIDE ACCOMMODATIONS OTHER 7065 05:18:05,821 --> 05:18:07,189 THAN COMMUNE SUPPORTS LIKE 7066 05:18:07,189 --> 05:18:08,323 SIGNING LANGUAGE AND CART 7067 05:18:08,323 --> 05:18:12,861 SYSTEMS AND THERE'S A LARGE GAP 7068 05:18:12,861 --> 05:18:13,762 WITH REGARD TO THE FEDERAL AND 7069 05:18:13,762 --> 05:18:16,665 STATE SYSTEM AND WONDERING IF 7070 05:18:16,665 --> 05:18:18,667 ANYTHING CAN TRANSFER FROM THE 7071 05:18:18,667 --> 05:18:20,135 STATE LOCAL SYSTEM. 7072 05:18:20,135 --> 05:18:20,535 THANKS. 7073 05:18:20,535 --> 05:18:21,737 >> Josh: ANY PANELISTS CARE TO 7074 05:18:21,737 --> 05:18:25,807 RESPOND? 7075 05:18:25,807 --> 05:18:27,175 THAT'S TELLING. 7076 05:18:27,175 --> 05:18:31,113 >> THIS IS SPECIFIC. 7077 05:18:31,113 --> 05:18:36,051 I HAVE CLOCKED IN PARTNERSHIP 7078 05:18:36,051 --> 05:18:41,857 WITH THE CENTER FOR EXPLOITED 7079 05:18:41,857 --> 05:18:47,195 AND MISSING CHILDREN AND 7080 05:18:47,195 --> 05:18:48,630 FEEDBACK WE GOT INCLUDING 7081 05:18:48,630 --> 05:18:50,565 COMMAND LEVEL LEADERSHIP AND THE 7082 05:18:50,565 --> 05:18:55,203 TRAIN THE TRAINER MODULE SO 7083 05:18:55,203 --> 05:19:04,246 YOU'RE NOT JUST TARGETING BUT 7084 05:19:04,246 --> 05:19:05,647 BILLING UP WITH THE COMMUNITY 7085 05:19:05,647 --> 05:19:07,049 AND LEVELLING UP THE AUTISM 7086 05:19:07,049 --> 05:19:10,752 KNOWLEDGE OF THAT STRUCTURE AND 7087 05:19:10,752 --> 05:19:12,554 WE KNOW THE CHALLENGE IS 1 7088 05:19:12,554 --> 05:19:13,221 MILLION LAW ENFORCEMENT OFFICERS 7089 05:19:13,221 --> 05:19:13,689 IN THE UNITED STATES. 7090 05:19:13,689 --> 05:19:16,558 THE STRUCTURE WITHIN THAT IS SO 7091 05:19:16,558 --> 05:19:16,858 COMPLICATED. 7092 05:19:16,858 --> 05:19:19,061 THERE'S HUNDREDS OF BRANCHS AT 7093 05:19:19,061 --> 05:19:22,464 THE STATE LEVEL BUT MAKING SURE 7094 05:19:22,464 --> 05:19:24,599 YOU'RE INCLUDING COMMAND-LEVEL 7095 05:19:24,599 --> 05:19:26,501 LEADERSHIP IN THE TRAINING WILL 7096 05:19:26,501 --> 05:19:28,737 ALSO INCENTIVIZE THOSE POSITIVE 7097 05:19:28,737 --> 05:19:29,071 INTERACTIONS. 7098 05:19:29,071 --> 05:19:31,440 YOU CAN CREATE OPPORTUNITIES TO 7099 05:19:31,440 --> 05:19:32,507 NOT ONLY THINK THROUGH WHEN 7100 05:19:32,507 --> 05:19:34,209 THINGS GO WRONG HOW CAN WE DO 7101 05:19:34,209 --> 05:19:37,713 BETTER BUT CELEBRATE AND TO 7102 05:19:37,713 --> 05:19:39,214 REALLY MAKE SPACE FOR MAKING 7103 05:19:39,214 --> 05:19:42,084 SURE THOSE POSITIVE EXAMPLES ARE 7104 05:19:42,084 --> 05:19:43,051 BECOMING POLICY AND PROCEDURE 7105 05:19:43,051 --> 05:19:45,587 AND NOT JUST ONE-OFFS. 7106 05:19:45,587 --> 05:19:46,655 >> Josh: THANK YOU. 7107 05:19:46,655 --> 05:19:48,790 WE'LL TURN TO A COMMENT FROM 7108 05:19:48,790 --> 05:19:58,100 MORENIKE. 7109 05:19:58,100 --> 05:20:02,204 >> IT'S EXTREMELY FRIGHTENING 7110 05:20:02,204 --> 05:20:12,280 PEOPLE ARE TRYING TO WEAPONIZE 7111 05:20:12,280 --> 05:20:14,783 LABELS AND SO-CALLED COMMUNITIES 7112 05:20:14,783 --> 05:20:16,618 OF CHOICE WHEN THEY KNOW THE 7113 05:20:16,618 --> 05:20:17,953 TERM COMMUNITY OF CHOICE MEANS 7114 05:20:17,953 --> 05:20:22,958 SOMETHING COMPLETELY DIFFERENT. 7115 05:20:22,958 --> 05:20:31,867 THINGS THEY'RE UNJUST WAYS TO 7116 05:20:31,867 --> 05:20:34,236 THROW THINGS AWAY AND WHO WILL 7117 05:20:34,236 --> 05:20:38,874 BE HURT MOST PEOPLE WHO LOOK 7118 05:20:38,874 --> 05:20:40,709 LIKE ME AND MY KIDS AND CLAIM 7119 05:20:40,709 --> 05:20:42,244 THEY'RE NECESSARY AS A PERSON 7120 05:20:42,244 --> 05:20:45,447 WITH A GRADUATE DEGREE IN 7121 05:20:45,447 --> 05:20:47,949 SPECIAL EDUCATION AND BLACK 7122 05:20:47,949 --> 05:20:51,420 DISABLED MOM WHO'S BLACK 7123 05:20:51,420 --> 05:20:52,954 DISABLED SON EXPERIENCED 7124 05:20:52,954 --> 05:20:55,190 INSTITUTIONAL AND THE THINGS 7125 05:20:55,190 --> 05:20:58,827 BEING PUSHED BY CERTAIN GROUPS 7126 05:20:58,827 --> 05:21:08,170 AND SIMILARLY MIND INDIVIDUALS 7127 05:21:08,170 --> 05:21:13,041 GET PEOPLE KILLED. 7128 05:21:13,041 --> 05:21:19,981 >> Josh: THANK YOU. 7129 05:21:19,981 --> 05:21:23,218 DINA. 7130 05:21:23,218 --> 05:21:28,857 >> THANK YOU. 7131 05:21:28,857 --> 05:21:31,226 IN MY YORK AS A SOCIAL WORKER 7132 05:21:31,226 --> 05:21:33,528 EVERY SINGLE INDIVIDUAL THEY 7133 05:21:33,528 --> 05:21:39,167 HAVE HAD DEALINGS WITH LAW 7134 05:21:39,167 --> 05:21:40,635 ENFORCEMENT GOT THEIR DIAGNOSIS 7135 05:21:40,635 --> 05:21:43,538 AFTER THE DEAL ENDS WITH LAW 7136 05:21:43,538 --> 05:21:43,872 ENFORCEMENT. 7137 05:21:43,872 --> 05:21:46,108 GETTING PEOPLE PROPERLY 7138 05:21:46,108 --> 05:21:49,010 DIAGNOSED TO GET AN ALERT 7139 05:21:49,010 --> 05:21:50,779 BRACELET OR WHATEVER IS 7140 05:21:50,779 --> 05:21:51,313 CRITICALLY IMPORTANT. 7141 05:21:51,313 --> 05:21:53,615 I HAVE THE SAME CONCERNS OF THE 7142 05:21:53,615 --> 05:21:55,083 I.D. CARD BUT THE REACHING FOR 7143 05:21:55,083 --> 05:22:02,924 THE WALLET THAT TERRIFIES ME AND 7144 05:22:02,924 --> 05:22:07,195 WE TAUGHT MY SON TO SAY I NEED 7145 05:22:07,195 --> 05:22:09,598 MY MOM, I'M AUTISTIC AND TAP THE 7146 05:22:09,598 --> 05:22:11,199 DOG TAG BECAUSE THEN ALL THE 7147 05:22:11,199 --> 05:22:12,534 HANDS ARE VISIBLE. 7148 05:22:12,534 --> 05:22:18,974 I AGREE, WE ABSOLUTELY HAVE TO 7149 05:22:18,974 --> 05:22:20,942 START TEACHING OUR PEOPLE HOW TO 7150 05:22:20,942 --> 05:22:22,577 USE THEIR HANDS AND DO THOSE 7151 05:22:22,577 --> 05:22:24,045 THINGS. 7152 05:22:24,045 --> 05:22:26,748 SADLY, MOST PEOPLE OF COLOR GET 7153 05:22:26,748 --> 05:22:32,220 THAT TALK WAY EARLY ON BUT 7154 05:22:32,220 --> 05:22:34,656 THERE'S STILL DISPROPORTIONATELY 7155 05:22:34,656 --> 05:22:36,491 REPRESENTS INTERACTIONS AND 7156 05:22:36,491 --> 05:22:38,393 PARENTS ARE SO AFRAID THEY'LL BE 7157 05:22:38,393 --> 05:22:39,828 SCARED OF POLICE THEY DON'T 7158 05:22:39,828 --> 05:22:42,164 TEACH THEM ANYTHING. 7159 05:22:42,164 --> 05:22:42,998 THAT DOESN'T WORK EITHER. 7160 05:22:42,998 --> 05:22:44,399 THANKS FOR LISTENING TO THAT. 7161 05:22:44,399 --> 05:22:46,902 I WANTED TO BRING UP ONE -- I 7162 05:22:46,902 --> 05:22:48,637 LOVE YOUR TRAFFIC STOP IDEA. 7163 05:22:48,637 --> 05:22:49,771 YOU THINK IF YOU CAN DRIVE A CAR 7164 05:22:49,771 --> 05:22:53,141 YOU CAN DRIVE A CAR BUT IF YOU 7165 05:22:53,141 --> 05:22:54,709 CAN'T DEAL WITH THE LAW 7166 05:22:54,709 --> 05:22:55,744 ENFORCEMENT OFFICER WHAT WON'T 7167 05:22:55,744 --> 05:22:56,411 TRAINED WHEN THEY STOP YOU 7168 05:22:56,411 --> 05:22:57,445 YOU'RE NOT READY TO DRIVE. 7169 05:22:57,445 --> 05:23:00,015 LAST THING I WANT TO SAY IS I'M 7170 05:23:00,015 --> 05:23:03,218 GOING TO HAVE TOLL YOU THE OHIO 7171 05:23:03,218 --> 05:23:05,487 STATE SENATE JUST OVERRODE THE 7172 05:23:05,487 --> 05:23:08,123 GOVERNOR'S VETE SKWOE TO DENY 7173 05:23:08,123 --> 05:23:10,292 TRANS-GENDER ACCESS TO FOR 7174 05:23:10,292 --> 05:23:12,260 PEOPLE WHO ARE TRANSGENDER. 7175 05:23:12,260 --> 05:23:18,166 AND WE TALKED ABOUT LGBTQ AND 7176 05:23:18,166 --> 05:23:18,967 INTERSECTIONALITY AND THE 7177 05:23:18,967 --> 05:23:21,236 HIGHEST RISK FACTOR FOR 7178 05:23:21,236 --> 05:23:23,972 INTERACTION IS BEING A BLACK 7179 05:23:23,972 --> 05:23:24,906 MALE TRANSGENDER PERSON 7180 05:23:24,906 --> 05:23:25,640 TRANSITIONING TO FEMALE. 7181 05:23:25,640 --> 05:23:26,608 THEY HAVE THE HIGHEST EXPOSURE 7182 05:23:26,608 --> 05:23:31,479 RISK OF ALL. 7183 05:23:31,479 --> 05:23:33,281 I HOPE ALL WE TALKED ABOUT IN 7184 05:23:33,281 --> 05:23:35,183 TERMS OF TRAINING LAW 7185 05:23:35,183 --> 05:23:37,285 ENFORCEMENT PEOPLE WE'RE ALSO 7186 05:23:37,285 --> 05:23:40,021 ING THE HIGHER PERCENTAGE OF 7187 05:23:40,021 --> 05:23:43,191 NEURODIVERGENT PEOPLE PART OF 7188 05:23:43,191 --> 05:23:43,792 THE TRANSGENDER COMMUNITY 7189 05:23:43,792 --> 05:23:44,559 BECAUSE THEY'RE DIAGRAM PANTLY 7190 05:23:44,559 --> 05:23:49,164 THROUGH THE COUNTRY. 7191 05:23:49,164 --> 05:23:50,232 I'M SORRY I DIDN'T HAVE A 7192 05:23:50,232 --> 05:23:50,498 QUESTION. 7193 05:23:50,498 --> 05:24:00,942 I HAD TO PREACH A MINUTE. 7194 05:24:06,414 --> 05:24:08,683 IF THERE'S A DATABASE THAT 7195 05:24:08,683 --> 05:24:10,885 POSSIBLY A PARENT OR GUARDIAN OR 7196 05:24:10,885 --> 05:24:13,922 POSSIBLY A THIRD-PARTY PUT YOU 7197 05:24:13,922 --> 05:24:16,558 IN YEARS AGO THAT CAN BE USED TO 7198 05:24:16,558 --> 05:24:18,693 DEFY AND WE'VE SEEN A NUMBER OF 7199 05:24:18,693 --> 05:24:21,296 STATES TARGETED DISABILITY 7200 05:24:21,296 --> 05:24:22,163 STATUS SPECIFICALLY AUTISM TO 7201 05:24:22,163 --> 05:24:25,133 SAY AUTISTIC PEOPLE ARE NOT 7202 05:24:25,133 --> 05:24:27,202 CAPABLE OF KNOWING WHO THEY ARE 7203 05:24:27,202 --> 05:24:30,672 AND MAKING THE DECISIONS AND 7204 05:24:30,672 --> 05:24:33,441 SEEKING TRANS-AFFIRMING CARE. 7205 05:24:33,441 --> 05:24:34,342 THAT'S A VERY ACTIVE CONCERN FOR 7206 05:24:34,342 --> 05:24:38,747 OUR COMMUNITY. 7207 05:24:38,747 --> 05:24:45,620 THAT INTERSECTS WITH THE 7208 05:24:45,620 --> 05:24:48,623 CONCERNS AROUND DISABILITY AND 7209 05:24:48,623 --> 05:24:50,392 WHETHER THE 9-1-1 DATABASE OR 7210 05:24:50,392 --> 05:24:51,393 HOW THAT INFORMATION'S USED 7211 05:24:51,393 --> 05:24:55,196 BECAUSE THAT A PLACE WHERE 7212 05:24:55,196 --> 05:25:01,469 THAT'S A REALLY SERIOUS CONCERN. 7213 05:25:01,469 --> 05:25:03,204 >> I WANTED TO TELL A SHORT 7214 05:25:03,204 --> 05:25:07,509 STORY WHICH IS THIS. 7215 05:25:07,509 --> 05:25:10,211 MY SON IS WHO IS AUTISTIC, LAST 7216 05:25:10,211 --> 05:25:12,414 YEAR WE WERE IN PARIS AT NEW 7217 05:25:12,414 --> 05:25:14,215 YEAR'S AND THEY BLOCKED OFF ALL 7218 05:25:14,215 --> 05:25:17,052 THE STREETS IN OUR ROUTE BACK TO 7219 05:25:17,052 --> 05:25:18,920 OUR HOTEL, HE'S A CREATURE OF 7220 05:25:18,920 --> 05:25:21,523 HABIT TO ROUTE BACK TO THE HOTEL 7221 05:25:21,523 --> 05:25:22,891 THE STREETS WERE BLOCKED OFF AND 7222 05:25:22,891 --> 05:25:25,126 IN FRONT OF OUR HOTEL THEY HAD 7223 05:25:25,126 --> 05:25:25,560 IT BLOCKED. 7224 05:25:25,560 --> 05:25:28,530 WE WERE TRYING TO TALK TO THE 7225 05:25:28,530 --> 05:25:29,764 OFFICERS TO LET THEM KNOW THAT 7226 05:25:29,764 --> 05:25:31,599 WE'RE STAYING IN THE HOTEL RIGHT 7227 05:25:31,599 --> 05:25:34,002 THERE AND MY SON DECIDED HE WAS 7228 05:25:34,002 --> 05:25:35,537 JUST GOING TO BREAK THE BLOCKADE 7229 05:25:35,537 --> 05:25:38,773 AND TOOK OFF RUNNING AND I SAID, 7230 05:25:38,773 --> 05:25:41,076 LIKE YOU SEE IN THE MOVIES WHERE 7231 05:25:41,076 --> 05:25:48,750 IT'S LIKE NOOO AND I SCREAMED, 7232 05:25:48,750 --> 05:25:50,185 HE'S AUTISTIC THE COPS LOOKED AT 7233 05:25:50,185 --> 05:25:53,521 EACH OTHER AND THE ONE COP 7234 05:25:53,521 --> 05:25:57,425 GRABBED HIM LIKE THIS AND SAID 7235 05:25:57,425 --> 05:25:59,094 MISTER, YOU CAN'T RUN OFF LIKE 7236 05:25:59,094 --> 05:25:59,928 THAT BECAUSE YOU MADE YOUR 7237 05:25:59,928 --> 05:26:00,462 MOTHER UPSET. 7238 05:26:00,462 --> 05:26:05,500 I'M THINKING TO MYSELF THAT 7239 05:26:05,500 --> 05:26:06,601 NEVER WOULD HAVE HAPPENED IN 7240 05:26:06,601 --> 05:26:07,802 AMERICA BECAUSE ALL THEY WOULD 7241 05:26:07,802 --> 05:26:10,972 HAVE SEEN IS A BLACK MAN RUNNING 7242 05:26:10,972 --> 05:26:13,675 DOWN THE STREET AND DISOBEYING 7243 05:26:13,675 --> 05:26:15,910 WHAT THEY WERE TOLD BUT WHEN I 7244 05:26:15,910 --> 05:26:18,413 SAID HE'S AUTISTIC, I DON'T KNOW 7245 05:26:18,413 --> 05:26:23,385 WHAT I SAID, I WAS IN SUCH A 7246 05:26:23,385 --> 05:26:27,188 PANIC, AND THEN WHEN THE OFFICER 7247 05:26:27,188 --> 05:26:28,623 AND HE TOLD THE OTHER OFFICER 7248 05:26:28,623 --> 05:26:29,858 AND HE'S WALKING BACK WITH HIM 7249 05:26:29,858 --> 05:26:31,159 AND SAYS NOW, WE DON'T WANT TO 7250 05:26:31,159 --> 05:26:34,062 DO THAT, WE VERY TO LISTEN TO 7251 05:26:34,062 --> 05:26:35,964 OUR MOTHER AND LECTURING HIM ON 7252 05:26:35,964 --> 05:26:38,233 LISTENING TO HIS MOTHER AND YOU 7253 05:26:38,233 --> 05:26:41,002 CAN'T DO THIS AND I'M JUST LIKE, 7254 05:26:41,002 --> 05:26:43,671 WHERE AM I, AND I THOUGHT, OH, 7255 05:26:43,671 --> 05:26:47,175 YEAH, I'M NOT IN AMERICA. 7256 05:26:47,175 --> 05:26:50,645 I WANTED TO LEAVE YOU WITH THAT 7257 05:26:50,645 --> 05:26:55,383 AND IT'S FRIGHTENING AND YOU 7258 05:26:55,383 --> 05:26:57,218 KEEP SAYING SHE'S KEEPS TALKING 7259 05:26:57,218 --> 05:26:58,420 ABOUT RACIAL STUFF BUT THAT'S 7260 05:26:58,420 --> 05:27:00,188 WHO I AM AND MY IDENTITY AND 7261 05:27:00,188 --> 05:27:01,356 EVERYTHING SAID HERE IT'S GOING 7262 05:27:01,356 --> 05:27:03,758 TO TAKE A COLLECTIVE ON ALL 7263 05:27:03,758 --> 05:27:06,094 FRONTS TO CHANGE THE WAY WE 7264 05:27:06,094 --> 05:27:08,329 PROTECT OUR INDIVIDUALS WHO ARE 7265 05:27:08,329 --> 05:27:09,230 PART OF OUR COMMUNITY. 7266 05:27:09,230 --> 05:27:10,965 AUTISTIC PEOPLE ARE PART OF OUR 7267 05:27:10,965 --> 05:27:12,901 COMMUNITY SO WE NEED TO PROTECT 7268 05:27:12,901 --> 05:27:14,936 OUR COMMUNITY MEMBERS AND THAT'S 7269 05:27:14,936 --> 05:27:16,137 FIRST AND FOREMOST FOR ME. 7270 05:27:16,137 --> 05:27:17,806 WE NEED TO PROTECT OUR COMMUNITY 7271 05:27:17,806 --> 05:27:18,039 MEMBERS. 7272 05:27:18,039 --> 05:27:21,142 WE ALL NEED TO DO BETTER, RIGHT. 7273 05:27:21,142 --> 05:27:24,479 WE NEED TO DO BETTER AND NEED TO 7274 05:27:24,479 --> 05:27:25,313 SPEAK UP. 7275 05:27:25,313 --> 05:27:27,649 PARENTS NEED TO GO TO LAWMAKERS 7276 05:27:27,649 --> 05:27:28,750 AND SAY HERE'S WHAT I NEED FROM 7277 05:27:28,750 --> 05:27:30,452 MY CHILD. 7278 05:27:30,452 --> 05:27:33,721 YOU CAN'T SIT AT HOME AND BE A 7279 05:27:33,721 --> 05:27:35,089 COUCH LEADER IF YOU'RE NOT GOING 7280 05:27:35,089 --> 05:27:37,792 ON YOUR COUCH AND GO TO THE 7281 05:27:37,792 --> 05:27:40,695 STATE CAPITAL AND SAY YOU NEED 7282 05:27:40,695 --> 05:27:43,198 THIS CHANGE AND WHILE YOU'RE 7283 05:27:43,198 --> 05:27:44,833 CHILD MATTERS AND YOUR USEFUL TO 7284 05:27:44,833 --> 05:27:45,066 ME. 7285 05:27:45,066 --> 05:27:47,101 I NEED EVERYBODY TO GET UP AND 7286 05:27:47,101 --> 05:27:52,640 PUT PEN TO PAPER AND DO WHAT YOU 7287 05:27:52,640 --> 05:27:55,210 GOT TO DO. 7288 05:27:55,210 --> 05:27:57,078 >> Josh: KAELYNN. 7289 05:27:57,078 --> 05:27:58,246 >> THERE'S OTHER LEVELS IF WE'RE 7290 05:27:58,246 --> 05:28:00,882 GOING TO LOOK AT THIS 7291 05:28:00,882 --> 05:28:01,749 COMPREHENSIVELY AND SCOTT YOU 7292 05:28:01,749 --> 05:28:04,452 BROUGHT UP A COUPLE ISSUES. 7293 05:28:04,452 --> 05:28:09,224 WE ENCOUNTERED THE SITUATION 7294 05:28:09,224 --> 05:28:11,759 WHERE WE WERE REPRESENTING AN 7295 05:28:11,759 --> 05:28:13,895 AUTISTIC MAN AND HIS SPECIALTY 7296 05:28:13,895 --> 05:28:16,698 IN DISABILITY LAW HAPPENS TO BE 7297 05:28:16,698 --> 05:28:17,699 SURGICAL MALPRACTICE AND CAUSING 7298 05:28:17,699 --> 05:28:18,566 DISABILITY. 7299 05:28:18,566 --> 05:28:21,903 HE REALLY DID NOT KNOW ANYTHING 7300 05:28:21,903 --> 05:28:24,506 ABOUT AUTISM AND YET HE WAS 7301 05:28:24,506 --> 05:28:25,206 DEFENDING SOMEBODY WITH AUTISM 7302 05:28:25,206 --> 05:28:27,876 WHICH TAKES IT TO THE NEXT LEVEL 7303 05:28:27,876 --> 05:28:30,612 OF A FRIEND OF OURS WHO IS A 7304 05:28:30,612 --> 05:28:31,446 FEDERAL COURT JUDGE AND SAID 7305 05:28:31,446 --> 05:28:32,247 WHAT WOULD YOU CHANGE IN THE 7306 05:28:32,247 --> 05:28:37,352 SYSTEM IF YOU COULD AND HE SAID 7307 05:28:37,352 --> 05:28:39,821 EDUCATION OF JUDGE ON ALL LEVELS 7308 05:28:39,821 --> 05:28:41,155 TO UNDERSTAND AUTISM AND 7309 05:28:41,155 --> 05:28:41,523 DISABILITIES. 7310 05:28:41,523 --> 05:28:43,691 THAT'S SOMETHING WE HAVE NOT 7311 05:28:43,691 --> 05:28:45,493 COVERED HERE YET. 7312 05:28:45,493 --> 05:28:48,062 IT IS AN IMPORTANT THING BECAUSE 7313 05:28:48,062 --> 05:28:49,364 A JUDGE MAY HAVE THE DISCRETION 7314 05:28:49,364 --> 05:28:52,867 OF MAKING A LONGER SENTENCE OR 7315 05:28:52,867 --> 05:28:54,402 SHORTER SENTENCE OR MODIFYING 7316 05:28:54,402 --> 05:28:56,905 THINGS SO THAT IS AN ELEMENT 7317 05:28:56,905 --> 05:28:59,541 THAT EVEN IF THERE ARE EXCELLENT 7318 05:28:59,541 --> 05:29:01,009 PEOPLE IN LAW ENFORCEMENT AND 7319 05:29:01,009 --> 05:29:06,714 LAURIE, I WANTED TO MENTION SOME 7320 05:29:06,714 --> 05:29:10,251 THINGS HERE, IT'S BEEN AMAZING 7321 05:29:10,251 --> 05:29:12,120 TO SEE HER TEAM IN ACTION. 7322 05:29:12,120 --> 05:29:13,588 THE LAST SITUATION WAS OUR SON 7323 05:29:13,588 --> 05:29:15,356 WAS AT A SHOPPING CENTER NOT FAR 7324 05:29:15,356 --> 05:29:18,293 FROM HERE WITH A BLACK MAN WHO 7325 05:29:18,293 --> 05:29:20,762 HAS BEEN AN ABSOLUTELY AMAZING 7326 05:29:20,762 --> 05:29:21,329 CAREGIVER. 7327 05:29:21,329 --> 05:29:25,333 HE WENT TO GET A PIZZA GOT OUT 7328 05:29:25,333 --> 05:29:27,902 OF THE CAR TO GET THE PIZZA AND 7329 05:29:27,902 --> 05:29:30,738 OUR SON ESCAPED FROM THE BACK OF 7330 05:29:30,738 --> 05:29:35,209 THE CAR BECAUSE HE WAS MISCH 7331 05:29:35,209 --> 05:29:40,949 MISCHIEVOUS AND HE WAS PANICKED 7332 05:29:40,949 --> 05:29:45,787 AND WAS PANICKED AND WE CALLED 7333 05:29:45,787 --> 05:29:46,454 MONTGOMERY COUNTY POLICE AND 7334 05:29:46,454 --> 05:29:49,190 SAID NO SIRENS AND THIS IS WHAT 7335 05:29:49,190 --> 05:29:49,624 THE SITUATION IS. 7336 05:29:49,624 --> 05:29:52,560 I WAS CONCERNED FOR TWO REASONS. 7337 05:29:52,560 --> 05:29:58,866 ONE WE HAD A BLACK MAN AT 10:30 7338 05:29:58,866 --> 05:30:00,201 AT NIGHT POSSIBLY GOING THROUGH 7339 05:30:00,201 --> 05:30:01,970 HOUSES NEAR THERE OR PARKING 7340 05:30:01,970 --> 05:30:03,972 LOTS WHERE CARS WERE PARKED 7341 05:30:03,972 --> 05:30:07,475 SEARCHING FOR OUR SON, MEANWHILE 7342 05:30:07,475 --> 05:30:13,281 IT TOOK FIVE OFFICERS 15 MINUTES 7343 05:30:13,281 --> 05:30:15,883 TO LOCATE OUR SON WHO WENT TO 7344 05:30:15,883 --> 05:30:19,187 THE MOVIE THEATRE BECAUSE HE 7345 05:30:19,187 --> 05:30:22,657 WANTED POPCORN AND THEY SAID, 7346 05:30:22,657 --> 05:30:24,926 MADISON YOU SEEM TO LIKE US 7347 05:30:24,926 --> 05:30:27,028 WOULD YOU LIKE TO TAKE A PICTURE 7348 05:30:27,028 --> 05:30:28,096 WITH US. 7349 05:30:28,096 --> 05:30:30,198 HE'S HAD A POSITIVE ENCOUNTER 7350 05:30:30,198 --> 05:30:30,565 WITH OFFICERS. 7351 05:30:30,565 --> 05:30:32,100 >> Josh: THANK YOU, I'LL HAVE TO 7352 05:30:32,100 --> 05:30:34,235 CUT YOU OFF BECAUSE THREES THREE 7353 05:30:34,235 --> 05:30:36,237 MORE PEOPLE AND WE HAVE FIVE 7354 05:30:36,237 --> 05:30:37,071 MINUTES. 7355 05:30:37,071 --> 05:30:37,972 >> THEY'VE DONE WONDERFUL THINGS 7356 05:30:37,972 --> 05:30:40,608 SHE'S NOT BEEN ABLE TO TELL YOU 7357 05:30:40,608 --> 05:30:44,178 AND LONG LIST PEOPLE CAN DO IN 7358 05:30:44,178 --> 05:30:46,981 THEIR COMMUNITY INCLUDING FIRST 7359 05:30:46,981 --> 05:30:47,281 RESPONDERS. 7360 05:30:47,281 --> 05:30:49,350 >> Josh: WOULD YOU WANT TO MAKE 7361 05:30:49,350 --> 05:30:51,185 A BRIEF COMMENT ABOUT JUDGES 7362 05:30:51,185 --> 05:31:00,294 SINCE THAT WAS BROUGHT UP? 7363 05:31:00,294 --> 05:31:01,963 >> STATE COURT JUDGE ARE COVERED 7364 05:31:01,963 --> 05:31:03,731 BY THE AMERICANS WITH DISABILITY 7365 05:31:03,731 --> 05:31:04,132 AT. 7366 05:31:04,132 --> 05:31:06,167 I'VE DONE TRAINING FOR STATE 7367 05:31:06,167 --> 05:31:08,970 COURT JUDGES IN VIRGINIA AND 7368 05:31:08,970 --> 05:31:10,405 I'LL TELL YOU THE JUSTICE 7369 05:31:10,405 --> 05:31:13,374 DEPARTMENT IS SUING THE 7370 05:31:13,374 --> 05:31:14,642 PENNSYLVANIA JUDICIAL SYSTEM 7371 05:31:14,642 --> 05:31:16,077 BECAUSE THERE ARE JUDGES 7372 05:31:16,077 --> 05:31:20,114 REFUSING TO ALLOW PEOPLE WHO ARE 7373 05:31:20,114 --> 05:31:22,650 HAVE OPIOID USE DISORDER FROM 7374 05:31:22,650 --> 05:31:29,824 TAKING METHADONE AND ZAVOXONE 7375 05:31:29,824 --> 05:31:30,792 THE DEPARTMENT OF JUSTICE HAS 7376 05:31:30,792 --> 05:31:33,594 DONE THINGS IN THIS SPACE AND 7377 05:31:33,594 --> 05:31:35,163 DONE TRAINING AND THE VIRGINIA 7378 05:31:35,163 --> 05:31:37,298 JUDICIAL SYSTEM HAS A GOOD AZA 7379 05:31:37,298 --> 05:31:39,200 COORDINATOR AND WE HAVE A 7380 05:31:39,200 --> 05:31:41,436 SETTLEMENT AGREEMENT WITH THE 7381 05:31:41,436 --> 05:31:45,940 VIRGINIA SYSTEM FOR FAILING TO 7382 05:31:45,940 --> 05:31:48,509 PROVIDE SIGN LANGUAGE 7383 05:31:48,509 --> 05:31:50,044 INTERPRETERS TO PEOPLE WHO ARE 7384 05:31:50,044 --> 05:31:51,179 DAECH OF DEAF AND SET UP A 7385 05:31:51,179 --> 05:31:53,081 SYSTEM AND THEY'RE REQUIRED TO 7386 05:31:53,081 --> 05:31:55,183 HAVE ADA COORDINATORS WHO ARE 7387 05:31:55,183 --> 05:31:55,917 IN-HOUSE PEOPLE WHO UNDERSTAND 7388 05:31:55,917 --> 05:31:59,187 HOW THE ADA WORKS. 7389 05:31:59,187 --> 05:32:07,862 >> Josh: THANK YOU, STEVE. 7390 05:32:07,862 --> 05:32:11,199 >> THANK YOU PANELISTS FOR THE 7391 05:32:11,199 --> 05:32:12,233 SHARING THE RESOURCE NOR 7392 05:32:12,233 --> 05:32:12,533 COMMUNITY. 7393 05:32:12,533 --> 05:32:15,236 I HAVE A QUESTION IF ANYONE WHO 7394 05:32:15,236 --> 05:32:18,239 HAS SPOKEN TODAY HAVE INTERFACED 7395 05:32:18,239 --> 05:32:20,675 WITH SCHOOLS OR EDUCATORS OR 7396 05:32:20,675 --> 05:32:22,910 SCHOOL ADMINISTRATORS TO SHARE 7397 05:32:22,910 --> 05:32:25,046 THE RESOURCES AND TRAININGS THAT 7398 05:32:25,046 --> 05:32:29,250 YOU'VE DONE IN THE BROADER 7399 05:32:29,250 --> 05:32:30,318 BECAUSE OUR KIDS SPEND HOURS IN 7400 05:32:30,318 --> 05:32:31,619 SCHOOL AND THAT WOULD BE A 7401 05:32:31,619 --> 05:32:32,787 PERFECT SETTING FOR THE 7402 05:32:32,787 --> 05:32:34,989 EDUCATION AND TO INVITE PARENTS 7403 05:32:34,989 --> 05:32:37,425 AND CAREGIVERS TO PARTICIPATE IN 7404 05:32:37,425 --> 05:32:42,230 THE EDUCATION. 7405 05:32:42,230 --> 05:32:42,797 >> Josh: ANYONE? 7406 05:32:42,797 --> 05:32:47,435 >> YES, I STARTED ABOUT 10 YEARS 7407 05:32:47,435 --> 05:32:50,671 AGO PRESENTING TO EDUCATORS, 7408 05:32:50,671 --> 05:32:55,109 PARENTS, PRINCIPLES, ALL SCHOOL 7409 05:32:55,109 --> 05:32:56,210 STAFF AND THE GENERAL POPULATION 7410 05:32:56,210 --> 05:32:58,079 HAVING AN UNDERSTANDING OF 7411 05:32:58,079 --> 05:33:03,184 AUTISM AND OTHER DISABILITIES. 7412 05:33:03,184 --> 05:33:06,020 OF COURSE OUR PUSH TO EACH EVERY 7413 05:33:06,020 --> 05:33:08,189 CLASS IN MONTGOMERY COUNTY. 7414 05:33:08,189 --> 05:33:11,125 ALL OUR CLASSES. 7415 05:33:11,125 --> 05:33:12,226 WE'RE TRYING TO HAVE MY PARTNER 7416 05:33:12,226 --> 05:33:14,028 IN THE BACK DO THAT. 7417 05:33:14,028 --> 05:33:16,731 ARE IN SCHOOLS ALL THE TIME. 7418 05:33:16,731 --> 05:33:18,833 WE WERE IN SCHOOLS WHEN FOLKS 7419 05:33:18,833 --> 05:33:20,535 MAYBE DIDN'T WANT US IN SCHOOLS 7420 05:33:20,535 --> 05:33:22,637 AND I SAID I'M GOING IN BECAUSE 7421 05:33:22,637 --> 05:33:24,672 MY KIDS NEED ME AND WE WERE 7422 05:33:24,672 --> 05:33:25,540 SEEING OFFICERS HAVE 7423 05:33:25,540 --> 05:33:28,476 INTERACTIONS AND I WASN'T GOING 7424 05:33:28,476 --> 05:33:30,978 TO TAKE THAT I WASN'T WANTED IN 7425 05:33:30,978 --> 05:33:32,647 THE SCHOOL AS AN EXCUSE BECAUSE 7426 05:33:32,647 --> 05:33:34,749 I KNOW MY KIDS NEED US AND I'VE 7427 05:33:34,749 --> 05:33:37,351 SEEN OUR OFFICERS SAY, WE HAD A 7428 05:33:37,351 --> 05:33:39,387 YOUNG MAN IN COMPLETE CRISIS BUT 7429 05:33:39,387 --> 05:33:41,923 HE SAID OFFICER LAURIE TOLD KNOW 7430 05:33:41,923 --> 05:33:44,125 KEEP MY HANDS HERE OR OFFICER 7431 05:33:44,125 --> 05:33:45,760 LAURIE DID THIS OR SAID 7432 05:33:45,760 --> 05:33:46,027 SOMETHING. 7433 05:33:46,027 --> 05:33:49,163 PLEASE, PLEASE, PLEASE, THE 7434 05:33:49,163 --> 05:33:50,264 IMPORTANCE OF POLICE OFFICERS 7435 05:33:50,264 --> 05:33:52,166 LOOKING LIKE ME IN FULL UNIFORM 7436 05:33:52,166 --> 05:33:53,835 BECAUSE THAT'S WHAT THEY'LL SEE 7437 05:33:53,835 --> 05:33:56,304 IN CRISIS IN UNIFORM HAVING THE 7438 05:33:56,304 --> 05:33:58,105 INTERACTION SAYING WHAT THEY 7439 05:33:58,105 --> 05:33:59,373 SHOULD DO IN A POLICE 7440 05:33:59,373 --> 05:33:59,907 INTERACTION NEEDS TO BE 7441 05:33:59,907 --> 05:34:00,208 SUPPORTIVE. 7442 05:34:00,208 --> 05:34:05,580 IT'S IMPORTANT. 7443 05:34:05,580 --> 05:34:10,918 >> DO YOU HAVE A QUESTION OR 7444 05:34:10,918 --> 05:34:15,056 COMMENT? 7445 05:34:15,056 --> 05:34:20,194 >> THIS PERSON I WAS HOPING TO 7446 05:34:20,194 --> 05:34:21,596 ANSWER MY QUESTION LEFT. 7447 05:34:21,596 --> 05:34:23,197 I WAS AROUND TRAINING. 7448 05:34:23,197 --> 05:34:26,567 DR. REYES IS AWESOME BUT COMING 7449 05:34:26,567 --> 05:34:27,535 FROM ALABAMA AND LIVING IN 7450 05:34:27,535 --> 05:34:30,438 BALTIMORE IS NOT SOMETHING I 7451 05:34:30,438 --> 05:34:31,239 OFTEN EXPERIENCE. 7452 05:34:31,239 --> 05:34:36,911 SIMILARLY AS MISPRO MS. PROCTOR 7453 05:34:36,911 --> 05:34:39,180 MENTIONED AS MENTIONED MY 7454 05:34:39,180 --> 05:34:40,648 INTERACTIONS WITH POLICE HAVEN'T 7455 05:34:40,648 --> 05:34:43,584 BEEN THAT POSITIVE DESPITE MY 7456 05:34:43,584 --> 05:34:44,752 WONDERFUL EDUCATION MY 7457 05:34:44,752 --> 05:34:45,786 INTERACTIONS ARE STILL NOT 7458 05:34:45,786 --> 05:34:47,188 ALWAYS THAT GREAT. 7459 05:34:47,188 --> 05:34:55,396 I AVOID THE POLICE. 7460 05:34:55,396 --> 05:34:57,965 MY QUESTION WAS GIVEN WE HAVE 7461 05:34:57,965 --> 05:35:00,301 THIS WONDERFUL TRAINING YOU DO 7462 05:35:00,301 --> 05:35:07,174 HERE IN MONTGOMERY COUNTY WHAT 7463 05:35:07,174 --> 05:35:10,278 THE BARRIERS TO MAKE THESE 7464 05:35:10,278 --> 05:35:13,214 TRAININGS A NATIONWIDE THING. 7465 05:35:13,214 --> 05:35:16,217 WE TEACH POLICE HOW TO SHOOT 7466 05:35:16,217 --> 05:35:18,719 ACCURATELY AND PRECISION AND HOW 7467 05:35:18,719 --> 05:35:21,355 DO WE TRAIN IN DE-ESCALATION IN 7468 05:35:21,355 --> 05:35:30,564 MY EDUCATION LEVEL I'VE HAD TO 7469 05:35:30,564 --> 05:35:33,968 DEESCALATE WHEN I WASN'T DOING 7470 05:35:33,968 --> 05:35:34,468 ANYTHING. 7471 05:35:34,468 --> 05:35:38,105 IS IT A FUNDING ISSUE? 7472 05:35:38,105 --> 05:35:41,442 A WILLINGNESS ISSUE A TIME 7473 05:35:41,442 --> 05:35:42,510 ISSUE? 7474 05:35:42,510 --> 05:35:44,478 DO YOU HAVE PERSPECTIVE ON THAT? 7475 05:35:44,478 --> 05:35:47,515 I'M THINKING HAVE YOU MORE 7476 05:35:47,515 --> 05:35:50,484 INTERACTION WITH A LARGER 7477 05:35:50,484 --> 05:35:52,386 VARIETY OF JURISDICTIONS. 7478 05:35:52,386 --> 05:35:54,288 WHAT HAVE YOU SEEN TO BE THE 7479 05:35:54,288 --> 05:35:55,189 BIGGEST BARRIER TO THESE KINDS 7480 05:35:55,189 --> 05:36:01,329 OF TRAININGS? 7481 05:36:01,329 --> 05:36:04,999 >> HOW MUCH TIME DO YOU HAVE? 7482 05:36:04,999 --> 05:36:08,002 I WOULD SAY THERE ARE 18,000 LAW 7483 05:36:08,002 --> 05:36:15,209 ENFORCEMENT AGENCIES AROUND THE 7484 05:36:15,209 --> 05:36:25,353 COUNTRY. 7485 05:36:25,987 --> 05:36:27,321 STATE MANDATED TRAINING AT THE 7486 05:36:27,321 --> 05:36:28,122 LOCAL LEVEL. 7487 05:36:28,122 --> 05:36:29,523 THERE'S NO ONE POLICY IN THE 7488 05:36:29,523 --> 05:36:34,161 UNITED STATES THAT MANDATES 7489 05:36:34,161 --> 05:36:34,762 TRAINING FOR ALL POLICE 7490 05:36:34,762 --> 05:36:35,029 OFFICERS. 7491 05:36:35,029 --> 05:36:37,365 IT'S AT THE LOCAL AND STATE 7492 05:36:37,365 --> 05:36:43,270 LEVEL. 7493 05:36:43,270 --> 05:36:45,373 THE AVAILABILITY OF 7494 05:36:45,373 --> 05:36:46,107 EVIDENCE-BASED TRAINING 7495 05:36:46,107 --> 05:36:50,211 MATERIALS AND THE AVAILABILITY 7496 05:36:50,211 --> 05:36:53,381 OF TRAINING TIME. 7497 05:36:53,381 --> 05:36:55,182 THERE'S A LOT OF DEMAND FOR 7498 05:36:55,182 --> 05:36:58,252 GETTING OFFICERS IN TRAINING ON 7499 05:36:58,252 --> 05:36:58,986 A LOT OF DIFFERENT IMPORTANT 7500 05:36:58,986 --> 05:37:07,161 TOPICS AND THAT KIND OF THING. 7501 05:37:07,161 --> 05:37:09,163 THE RECRUITMENT AND RETENTION 7502 05:37:09,163 --> 05:37:10,197 ISSUES IN LAW ENFORCEMENT AND 7503 05:37:10,197 --> 05:37:11,232 TAKING OFFICERS OFF THE STREETS 7504 05:37:11,232 --> 05:37:12,800 TO GO INTO TRAINING. 7505 05:37:12,800 --> 05:37:16,837 THERE'S SOME COMPOUNDING FACTORS 7506 05:37:16,837 --> 05:37:19,106 THAT RELATE TO THE IMPACT ON 7507 05:37:19,106 --> 05:37:20,241 GETTING THIS TYPE OF TRAINING 7508 05:37:20,241 --> 05:37:23,044 OUT ACROSS THE COUNTRY BUT I 7509 05:37:23,044 --> 05:37:26,847 WOULD SAY THAT THE STATE LEVEL 7510 05:37:26,847 --> 05:37:29,483 ACCREDITATION FOR MANDATING WHAT 7511 05:37:29,483 --> 05:37:32,353 OFFICERS NEED THAT IS ONE AVENUE 7512 05:37:32,353 --> 05:37:36,924 UNLIKE AMANDA MENTIONED IN 7513 05:37:36,924 --> 05:37:38,325 VIRGINIA IT'S ONE HOUR OF 7514 05:37:38,325 --> 05:37:40,327 TRAINING THAT IS REQUIRED BUT 7515 05:37:40,327 --> 05:37:45,633 IT'S DIFFERENT IN EVERY STATE. 7516 05:37:45,633 --> 05:37:46,967 >> THANK YOU VERY MUCH. 7517 05:37:46,967 --> 05:37:48,669 I WANT TO THANK THE PANEL 7518 05:37:48,669 --> 05:37:50,037 MEMBERS FROM THE EARLIER PANEL 7519 05:37:50,037 --> 05:37:51,605 AND THE LATER PANEL THIS 7520 05:37:51,605 --> 05:37:51,872 AFTERNOON. 7521 05:37:51,872 --> 05:37:53,641 I WANT TO THANK ALL THE 7522 05:37:53,641 --> 05:37:54,875 COMMITTEE MEMBERS FOR REALLY 7523 05:37:54,875 --> 05:37:56,811 WHAT WAS A SIMULATING 7524 05:37:56,811 --> 05:37:57,378 DISCUSSION. 7525 05:37:57,378 --> 05:37:59,313 I THINK WE HEARD A LOT. 7526 05:37:59,313 --> 05:38:01,015 WE HEARD A LOT ABOUT TRAINING 7527 05:38:01,015 --> 05:38:03,951 AND COMMUNITY ENGAGEMENT AND 7528 05:38:03,951 --> 05:38:06,587 TRAINING BOTH SIDES, ABOUT 7529 05:38:06,587 --> 05:38:09,690 THINKING ABOUT IT 7530 05:38:09,690 --> 05:38:12,126 COMPREHENSIVELY AND HEARD ABOUT 7531 05:38:12,126 --> 05:38:13,227 OBSTACLES WITH THE FEDERAL 7532 05:38:13,227 --> 05:38:15,329 SYSTEM OF ENFORCEMENT IN JUDGES, 7533 05:38:15,329 --> 05:38:17,765 WHETHER IT'S ABOUT THE 7534 05:38:17,765 --> 05:38:18,232 BALKANIZED SYSTEM. 7535 05:38:18,232 --> 05:38:22,336 FOR SOMEONE WHO DEALS WITH 7536 05:38:22,336 --> 05:38:23,604 TRYING TO INFLUENCE MEDICAL 7537 05:38:23,604 --> 05:38:25,573 PRACTICE, MENTAL HEALTH 7538 05:38:25,573 --> 05:38:26,774 PRACTICES THROUGHOUT THE UNITED 7539 05:38:26,774 --> 05:38:33,614 STATES, THIS IS A FAMILIAR 7540 05:38:33,614 --> 05:38:33,881 STORY. 7541 05:38:33,881 --> 05:38:34,849 THE FEDERAL GOVERNMENT OFTEN 7542 05:38:34,849 --> 05:38:36,617 DOESN'T SET STANDARDS. 7543 05:38:36,617 --> 05:38:37,885 THAT'S LEFT TO VARIOUS OTHER 7544 05:38:37,885 --> 05:38:39,019 ORGANIZATIONS INCLUDING STATE 7545 05:38:39,019 --> 05:38:40,521 AND LOCAL GOVERNMENT. 7546 05:38:40,521 --> 05:38:42,356 THINKING ABOUT WAYS WE MIGHT 7547 05:38:42,356 --> 05:38:44,825 RECOMMEND SOME OF THIS WORK TO 7548 05:38:44,825 --> 05:38:46,160 BE DONE IN A NATIONAL WAY COULD 7549 05:38:46,160 --> 05:38:47,027 BE PRODUCTIVE. 7550 05:38:47,027 --> 05:38:48,929 THANK YOU VERY MUCH FOR ENGAGING 7551 05:38:48,929 --> 05:38:52,566 ON THESE TOPICS AND FOR ENGAGING 7552 05:38:52,566 --> 05:38:55,069 WITH PUBLIC COMMENTS AND WITH 7553 05:38:55,069 --> 05:38:57,171 THIS MORNING'S TOPICS AS WELL. 7554 05:38:57,171 --> 05:38:58,939 SUSAN, WHAT OTHER CLOSING 7555 05:38:58,939 --> 05:39:00,741 REMARKS DO WE HAVE. 7556 05:39:00,741 --> 05:39:03,577 >> Susan: I WANT TO THANK YOU 7557 05:39:03,577 --> 05:39:04,979 AGAIN FOR WONDERFUL PANELS THIS 7558 05:39:04,979 --> 05:39:05,980 AFTERNOON AND APPRECIATE THE 7559 05:39:05,980 --> 05:39:07,781 INSIGHT AND SUCH AN IMPORTANT 7560 05:39:07,781 --> 05:39:07,982 TOPIC. 7561 05:39:07,982 --> 05:39:09,450 I'M GLAD WE WERE ABLE TO TAKE 7562 05:39:09,450 --> 05:39:12,620 THIS ON AND HAVE SUCH A GREAT 7563 05:39:12,620 --> 05:39:14,088 DISCUSSION SO THANK YOU VERY 7564 05:39:14,088 --> 05:39:17,858 MUCH AND I KNOW THAT THROUGH 7565 05:39:17,858 --> 05:39:18,526 DEPARTMENT OF JUSTICE THERE'S A 7566 05:39:18,526 --> 05:39:20,194 LOT OF DIFFERENT COORDINATION 7567 05:39:20,194 --> 05:39:20,728 ACTIVITIES GOING ON. 7568 05:39:20,728 --> 05:39:23,030 WE'LL CONTINUE TO ENGAGE ON 7569 05:39:23,030 --> 05:39:23,230 THAT. 7570 05:39:23,230 --> 05:39:23,731 THANK YOU. 7571 05:39:23,731 --> 05:39:27,234 >> Josh: AND BY WAY OF CLOSING 7572 05:39:27,234 --> 05:39:28,702 OUT THE MEETING WE'LL DISPENSE 7573 05:39:28,702 --> 05:39:34,575 OUT OF TIME INTEREST WITH ORAL 7574 05:39:34,575 --> 05:39:37,077 RECITATION OF THE ROUND ROBIN 7575 05:39:37,077 --> 05:39:38,379 UPDATES BUT THEY'VE BEEN 7576 05:39:38,379 --> 05:39:40,247 PROVIDED IN WRITING AND ALL THE 7577 05:39:40,247 --> 05:39:42,049 MATERIALS I'VE SAID -- THAT'S IN 7578 05:39:42,049 --> 05:39:43,684 WRITING OR YOU GOT IT BEFORE IS 7579 05:39:43,684 --> 05:39:47,154 ALL ON OUR WEBSITE AND ALL 7580 05:39:47,154 --> 05:39:47,588 PUBLICLY AVAILABLE. 7581 05:39:47,588 --> 05:39:49,390 AND SO ANYONE LISTENING AND 7582 05:39:49,390 --> 05:39:51,091 WANTS MORE INFORMATION WANTS TO 7583 05:39:51,091 --> 05:39:53,294 BE ABLE TO TAKE A PICTURE OF 7584 05:39:53,294 --> 05:39:56,530 THAT QR CODE OR CLICK ON ANY OF 7585 05:39:56,530 --> 05:39:58,666 THE LINKS YOU SHOULD BE ABLE TO 7586 05:39:58,666 --> 05:40:01,402 GET THAT ON OUR WEBSITE. 7587 05:40:01,402 --> 05:40:02,903 THANK YOU VERY VERY MUCH AND OUR 7588 05:40:02,903 --> 05:40:05,072 NEXT MEETING IS SCHEDULED FOR -- 7589 05:40:05,072 --> 05:40:08,809 >> APRIL 17 AND I ALSO WANT TO 7590 05:40:08,809 --> 05:40:12,813 GIVE YOU A HEADS-UP WE'RE 7591 05:40:12,813 --> 05:40:14,048 TENTATIVELY PLANNING FOR APRIL 7592 05:40:14,048 --> 05:40:15,883 16 TO BE OUR SPECIAL EVENT. 7593 05:40:15,883 --> 05:40:17,651 YOU'RE HEARING IT AND WE'LL LET 7594 05:40:17,651 --> 05:40:19,587 YOU KNOW THE FINAL DATE FOR 7595 05:40:19,587 --> 05:40:19,954 THAT. 7596 05:40:19,954 --> 05:40:21,388 WE'LL ALSO HAVE OUR OFFICE BE IN 7597 05:40:21,388 --> 05:40:22,923 TOUCH WITH THE SUMMARY OF 7598 05:40:22,923 --> 05:40:25,659 ADVANCES AND VOTING FOR THAT AND 7599 05:40:25,659 --> 05:40:26,894 FOLLOW-UPS WITH THE NEW REPORT 7600 05:40:26,894 --> 05:40:28,929 WE'RE GOING TO BE DOING ON 7601 05:40:28,929 --> 05:40:29,830 CO-OCCURRING CONDITIONS. 7602 05:40:29,830 --> 05:40:31,198 SO WE REALLY APPRECIATE 7603 05:40:31,198 --> 05:40:35,102 EVERYONE'S ENGAGEMENT TODAY AND 7604 05:40:35,102 --> 05:40:36,570 WISH EVERYONE SAFE TRAVELS HOME 7605 05:40:36,570 --> 05:40:39,306 AND HOPE YOU HAVE A WONDERFUL 7606 05:40:39,306 --> 05:40:39,573 EVENING. 7607 05:40:39,573 --> 05:40:40,140 >> 7608 05:40:40,140 --> 05:40:40,908 >> THANK YOU TO THE STAFF 7609 05:40:40,908 --> 05:40:43,077 SITTING AROUND THE OUTSIDE OF 7610 05:40:43,077 --> 05:40:44,511 THE ROOM. 7611 05:40:44,511 --> 05:40:47,047 GIVE THEM A GOOD THANKS AND 7612 05:40:47,047 --> 05:40:48,916 ROUND OF APPLAUSE. 7613 05:40:48,916 --> 05:40:49,483 EVERYONE WHO TRAVELED SAFE 7614 05:40:49,483 --> 05:40:59,727 TRAVELS BACK.