1 00:00:05,939 --> 00:00:08,108 >> THIS MEETING OF THE BOARD AND 2 00:00:08,174 --> 00:00:08,641 BELATED HAPPY NEW YEAR. 3 00:00:08,708 --> 00:00:10,410 I'D LIKE TO WELCOME OUR BOARD 4 00:00:10,477 --> 00:00:12,379 MEMBERS WHO ARE ATTENDING TODAY 5 00:00:12,445 --> 00:00:22,422 IN PERSON. 6 00:00:22,489 --> 00:00:26,059 PARTICIPATING VIA ZOOM ARE 7 00:00:26,126 --> 00:00:30,530 DR. SHERIN DEVASKAR -- AND ALSO 8 00:00:30,597 --> 00:00:32,098 AS ALWAYS I'D LIKE TO WELCOME 9 00:00:32,165 --> 00:00:34,467 DRS. TABAK AND SCHOR WHO ARE 10 00:00:34,534 --> 00:00:35,802 WITH US IN PERSON ALONG WITH 11 00:00:35,869 --> 00:00:37,370 MANY OTHER NIH AND CLINICAL 12 00:00:37,437 --> 00:00:38,838 CENTER LEADERS ATTENDING VIA 13 00:00:38,905 --> 00:00:39,406 ZOOM. 14 00:00:39,472 --> 00:00:40,874 WE ALSO WELCOME OUR COLLEAGUES 15 00:00:40,940 --> 00:00:42,375 FROM THE NIH COMMUNITY AND 16 00:00:42,442 --> 00:00:44,110 MEMBERS OF THE PUBLIC WHO ARE 17 00:00:44,177 --> 00:00:46,713 JOINING OUR LIVE VIDEOCAST 18 00:00:46,780 --> 00:00:48,681 SESSION. 19 00:00:48,748 --> 00:00:49,582 SO FIRST ON BEHALF OF THE BOARD, 20 00:00:49,649 --> 00:00:51,084 I WANT TO EXTEND A SPECIAL THANK 21 00:00:51,151 --> 00:00:54,921 YOU TO DR. NINA SCHOR, WHO HAS 22 00:00:54,988 --> 00:00:56,489 AGREED TO SERVE AS OUR 23 00:00:56,556 --> 00:00:59,959 DESIGNATED FEDERAL OFFICIAL AS 24 00:01:00,026 --> 00:01:01,394 WELL AS EXECUTIVE SECRETARY. 25 00:01:01,461 --> 00:01:04,230 PRIOR TO ACCEPTING THIS ROLE, 26 00:01:04,297 --> 00:01:04,998 DR. SCHWETZ FULFILLED THIS 27 00:01:05,064 --> 00:01:09,035 POSITION AND WE'LL HEAR FROM DRN 28 00:01:09,102 --> 00:01:09,669 AT NIH. 29 00:01:09,736 --> 00:01:10,837 SO WITH THAT LIKED TO WELCOME 30 00:01:10,904 --> 00:01:11,104 DR. TABAK. 31 00:01:11,171 --> 00:01:12,372 THANK YOU FOR BEING WITH US ONCE 32 00:01:12,439 --> 00:01:13,673 AGAIN, AND WE'LL BEGIN WITH YOUR 33 00:01:13,740 --> 00:01:15,208 SLIDES AND AS ALWAYS, WE LOOK 34 00:01:15,275 --> 00:01:16,042 FORWARD TO YOUR UPDATES. 35 00:01:16,109 --> 00:01:17,310 >> THANK YOU SO MUCH AND GOOD 36 00:01:17,377 --> 00:01:22,315 MORNING, EVERYBODY. 37 00:01:22,382 --> 00:01:25,819 THIS MEETING IS A BR BIT OF A 38 00:01:25,885 --> 00:01:27,253 TRANSITIONAL MEETING. 39 00:01:27,320 --> 00:01:30,757 AS HAS ALREADY BEEN ALLUDED TO, 40 00:01:30,824 --> 00:01:32,492 DR. SCHOR GOING FORWARD WILL BE 41 00:01:32,559 --> 00:01:33,126 THE DESIGNATED FEDERAL OFFICIAL. 42 00:01:33,193 --> 00:01:36,796 WHAT THAT MEANS IN ENGLISH IS 43 00:01:36,863 --> 00:01:38,097 THAT I HAVE BEEN RELIEVED OF 44 00:01:38,164 --> 00:01:40,800 THAT DUTY, WHICH I REINHERITED 45 00:01:40,867 --> 00:01:44,537 BACK FROM DR. SCHWETZ, AND I'LL 46 00:01:44,604 --> 00:01:47,173 EXPLAIN AS WE GO THROUGH THE 47 00:01:47,240 --> 00:01:48,908 SLIDES HOW THAT OCCURS. 48 00:01:48,975 --> 00:01:50,343 SO IF I CAN HAVE THE NEXT SLIDE, 49 00:01:50,410 --> 00:01:55,281 PLEASE. 50 00:01:55,348 --> 00:01:57,183 I'LL TALK ABOUT LEADERSHIP 51 00:01:57,250 --> 00:01:59,152 CHANGES, SOME AWARDS OUR STAFF 52 00:01:59,219 --> 00:02:01,254 HAVE RECEIVED, EVENTS, AND 53 00:02:01,321 --> 00:02:02,255 REALLY FOCUS ON SOME OF THE 54 00:02:02,322 --> 00:02:03,790 EFFORTS THAT WE HAVE BEEN 55 00:02:03,857 --> 00:02:06,292 ENGAGED IN TO SUPPORT 56 00:02:06,359 --> 00:02:08,027 INDIVIDUALS WITH DISABILITIES IN 57 00:02:08,094 --> 00:02:09,028 THE BIOMEDICAL RESEARCH 58 00:02:09,095 --> 00:02:15,268 WORKFORCE. 59 00:02:15,335 --> 00:02:17,670 SO THE BIG CHANCE IS THE 60 00:02:17,737 --> 00:02:19,205 APPOINTMENT OF THE PERMANENT NIH 61 00:02:19,272 --> 00:02:20,707 DIRECTOR, DR. MONICA 62 00:02:20,773 --> 00:02:21,708 BERTAGNOLLI, WHO SENDS HER 63 00:02:21,774 --> 00:02:22,475 REGRETS FOR NOT BEING HERE 64 00:02:22,542 --> 00:02:22,909 TODAY. 65 00:02:22,976 --> 00:02:25,211 SHE IS IN COLORADO, ADDRESSING 66 00:02:25,278 --> 00:02:28,515 THE AAAS MEETING IN A FEW HOURS, 67 00:02:28,581 --> 00:02:31,317 MAYBE AN HOUR OR SO. 68 00:02:31,384 --> 00:02:33,019 AND DR. BERTAGNOLLI, AS I THINK 69 00:02:33,086 --> 00:02:36,089 YOU ALL KNOW, IS THE FIRST 70 00:02:36,155 --> 00:02:38,024 SURGEON TO BE NAMED AS NIH 71 00:02:38,091 --> 00:02:39,526 DIRECTOR AND IS ONLY THE SECOND 72 00:02:39,592 --> 00:02:43,696 WOMAN TO BE NAMED TO THIS ROLE. 73 00:02:43,763 --> 00:02:46,199 WITH DR. BERTAGNOLLI'S 74 00:02:46,266 --> 00:02:49,269 APPOINTMENT AS NIH DIRECTOR, I 75 00:02:49,335 --> 00:02:52,672 MOVED FROM THE ACTING DIRECTOR 76 00:02:52,739 --> 00:02:54,641 ROLE TO THE PRINCIPAL DEPUTY 77 00:02:54,707 --> 00:02:55,742 ROLE, WHICH I HAVE HAD THE 78 00:02:55,808 --> 00:02:56,943 PRIVILEGE OF SERVING IN FOR A 79 00:02:57,010 --> 00:02:59,112 NUMBER OF YEARS. 80 00:02:59,178 --> 00:03:04,717 DR. TEAR A SCHW TARA SCHWETZ MOA 81 00:03:04,784 --> 00:03:06,119 NEW ROLE, WHICH I'LL DESCRIBE IN 82 00:03:06,185 --> 00:03:07,987 A MOMENT, AND SO IT'S THOSE 83 00:03:08,054 --> 00:03:11,057 MUSICAL CHAIRS THAT LEAD US TO 84 00:03:11,124 --> 00:03:12,025 THESE VARIOUS CHANGES. 85 00:03:12,091 --> 00:03:14,027 SO IF I CAN HAVE THE NEXT SLIDE, 86 00:03:14,093 --> 00:03:14,427 PLEASE. 87 00:03:14,494 --> 00:03:17,597 SO TARA HAS BEEN NAMED AS THE 88 00:03:17,664 --> 00:03:20,033 NIH DEPUTY DIRECTOR FOR PROGRAM 89 00:03:20,099 --> 00:03:20,833 COORDINATION, PLANNING AND 90 00:03:20,900 --> 00:03:22,435 STRATEGIC INITIATIVES. 91 00:03:22,502 --> 00:03:25,572 THE ACRONYM IS DPCPSI. 92 00:03:25,638 --> 00:03:27,974 ONLY AT NIH DO YOU HAVE ACRONYMS 93 00:03:28,041 --> 00:03:28,775 LIKE THIS. 94 00:03:28,841 --> 00:03:30,743 IT TURNS OUT THIS IS PROBABLY 95 00:03:30,810 --> 00:03:34,280 THE LARGEST DIVISION WITHIN THE 96 00:03:34,347 --> 00:03:36,649 OFFICE OF THE DIRECTOR, AND IT 97 00:03:36,716 --> 00:03:40,353 IS HOME TO MANY OF THE THEMATIC 98 00:03:40,420 --> 00:03:41,554 OFFICES, THE OFFICE OF AIDS 99 00:03:41,621 --> 00:03:42,789 RESEARCH, THE OFFICE OF RESEARCH 100 00:03:42,855 --> 00:03:44,624 ON WOMEN'S HEALTH, THE OFFICE OF 101 00:03:44,691 --> 00:03:45,625 SEXUAL AND GENDER MINORITY. 102 00:03:45,692 --> 00:03:47,160 I MEAN, THERE'S A WHOLE SERIES, 103 00:03:47,226 --> 00:03:51,064 I THINK IT'S 14 WHEN YOU COUNT 104 00:03:51,130 --> 00:03:52,832 THEM UP, MAYBE 15, I LOSE COUNT, 105 00:03:52,899 --> 00:03:54,801 BUT DR. SCHWETZ IS NOW IN THAT 106 00:03:54,867 --> 00:03:57,103 ROLE, AND WHICH IS WHY I HAVE 107 00:03:57,170 --> 00:04:00,373 REINHERITED FOR THIS MEETING TO 108 00:04:00,440 --> 00:04:03,176 BE THE DESIGNATED OFFICIAL BUT 109 00:04:03,242 --> 00:04:04,110 DR. SCHOR WILL BE DOING THAT 110 00:04:04,177 --> 00:04:06,179 GOING FORWARD. 111 00:04:06,245 --> 00:04:09,115 WE ALSO HAVE A NEW DIRECTOR OF 112 00:04:09,182 --> 00:04:10,216 THE NATIONAL CANCER INSTITUTE, 113 00:04:10,283 --> 00:04:11,951 SO DR. BERTAGNOLLI HAD BEEN THE 114 00:04:12,018 --> 00:04:14,687 DIRECTOR OF THE CANCER 115 00:04:14,754 --> 00:04:14,954 INSTITUTE. 116 00:04:15,021 --> 00:04:16,322 SHE MOVED FROM THAT ROLE TO THE 117 00:04:16,389 --> 00:04:20,293 DIRECTORSHIP OF NIH. 118 00:04:20,360 --> 00:04:22,729 DR. KIMRYN RATHMELL WAS NAMED BY 119 00:04:22,795 --> 00:04:23,796 THE PRESIDENT AS DIRECTOR OF THE 120 00:04:23,863 --> 00:04:24,364 NCI. 121 00:04:24,430 --> 00:04:25,531 SHE HAS HIT THE GROUND RUNNING 122 00:04:25,598 --> 00:04:28,801 AND WE ARE DELIGHTED TO HAVE 123 00:04:28,868 --> 00:04:31,537 KIMRYN HERE AS WELL. 124 00:04:31,604 --> 00:04:33,206 WE HAVE JUST ANNOUNCED THE 125 00:04:33,272 --> 00:04:34,407 APPOINTMENT OF A NEW DIRECTOR 126 00:04:34,474 --> 00:04:37,777 FOR THE CENTER FOR INFORMATION 127 00:04:37,844 --> 00:04:42,348 TECHNOLOGY, DR. SEAN MOONEY WHO 128 00:04:42,415 --> 00:04:44,550 WILL BE JOINING US MID TO LATE 129 00:04:44,617 --> 00:04:46,419 MARCH. 130 00:04:46,486 --> 00:04:49,188 SEAN WILL BE COMING FROM THE 131 00:04:49,255 --> 00:04:49,822 UNIVERSITY OF WASHINGTON AND WE 132 00:04:49,889 --> 00:04:51,157 ARE CERTAINLY LOOKING FORWARD TO 133 00:04:51,224 --> 00:04:55,194 HIS LEADERSHIP. 134 00:04:55,261 --> 00:04:56,696 DR. D'SOUZA HAS BEEN INTERIM 135 00:04:56,763 --> 00:04:57,563 DIRECTOR OF CIT. 136 00:04:57,630 --> 00:05:01,534 HE HAS DONE A SPECTACULAR JOB AS 137 00:05:01,601 --> 00:05:02,602 INTERIM DIRECTOR AND WE'RE 138 00:05:02,669 --> 00:05:08,074 GRATEFUL FOR ALL OF HIS SERVICE. 139 00:05:08,141 --> 00:05:10,710 DR. LYRIC JORGENSON HAD BEEN THE 140 00:05:10,777 --> 00:05:12,145 ASSOCIATE DIRECTOR FOR THE 141 00:05:12,211 --> 00:05:13,312 SCIENCE POLICY OFFICE AT NIH, 142 00:05:13,379 --> 00:05:16,149 AND FOLLOWING A SEARCH WAS NAMED 143 00:05:16,215 --> 00:05:20,019 TO THAT POSITION PERMANENTLY. 144 00:05:20,086 --> 00:05:21,454 SO WE ARE DELIGHTED TO BE ABLE 145 00:05:21,521 --> 00:05:22,622 TO ANNOUNCE THAT TO ALL OF YOU 146 00:05:22,689 --> 00:05:24,924 TODAY. 147 00:05:24,991 --> 00:05:26,893 WE HAVE A NEW ASSOCIATE DIRECTOR 148 00:05:26,959 --> 00:05:28,327 FOR BEHAVIORAL AND SOCIAL 149 00:05:28,394 --> 00:05:32,832 SCIENCES RESEARCH, DR. JANE 150 00:05:32,899 --> 00:05:33,066 SIMONI. 151 00:05:33,132 --> 00:05:36,836 THIS IS ONE OF THOSE OFFICES IN 152 00:05:36,903 --> 00:05:39,138 DPCPSI AND JANE RECENTLY JOINED 153 00:05:39,205 --> 00:05:39,305 US. 154 00:05:39,372 --> 00:05:41,641 AND WE HAVE AN ACTING ASSOCIATE 155 00:05:41,708 --> 00:05:43,976 DIRECTOR FOR AIDS RESEARCH, 156 00:05:44,043 --> 00:05:47,246 DR. DIANA FINZI, WHO WE HAVE 157 00:05:47,313 --> 00:05:50,049 BORROWED FOR A BRIEF PERIOD OF 158 00:05:50,116 --> 00:05:52,051 TIME AND WE ARE ENGAGED IN AN 159 00:05:52,118 --> 00:05:54,587 ACTIVE SEARCH FOR A PERMANENT 160 00:05:54,654 --> 00:05:56,422 DIRECTOR. 161 00:05:56,489 --> 00:05:58,191 AND JOHN BURKLOW, WHO I THINK 162 00:05:58,257 --> 00:05:59,692 MANY OF YOU KNOW, WHO HAD BEEN 163 00:05:59,759 --> 00:06:01,027 THE DIRECTOR OF OUR 164 00:06:01,094 --> 00:06:02,762 COMMUNICATIONS OFFICE FOR MANY 165 00:06:02,829 --> 00:06:05,398 YEARS, HAD BEEN SERVING AS THE 166 00:06:05,465 --> 00:06:06,599 ACTING CHIEF OF STAFF, AND NOW 167 00:06:06,666 --> 00:06:09,869 HAS BEEN NAMED TO THAT POSITION 168 00:06:09,936 --> 00:06:13,706 PERMANENTLY. 169 00:06:13,773 --> 00:06:15,241 SO NOW WE GET TO BRAG A LITTLE 170 00:06:15,308 --> 00:06:16,109 BIT ABOUT SOME OF OUR 171 00:06:16,175 --> 00:06:16,409 COLLEAGUES. 172 00:06:16,476 --> 00:06:18,177 THIS IS THE MOST FUN PART OF THE 173 00:06:18,244 --> 00:06:24,417 WHOLE MEETING, AT LEAST FOR ME. 174 00:06:24,484 --> 00:06:26,285 SO FIRST, THE CLINICAL CENTER'S 175 00:06:26,352 --> 00:06:28,454 OWN STEVE ROSENBERG WAS AWARDED 176 00:06:28,521 --> 00:06:30,323 THE NATIONAL MEDAL OF TECHNOLOGY 177 00:06:30,389 --> 00:06:31,090 AND INNOVATION. 178 00:06:31,157 --> 00:06:33,626 HERE YOU SEE DR. ROSENBERG WITH 179 00:06:33,693 --> 00:06:34,694 PRESIDENT BIDEN GETTING READY TO 180 00:06:34,761 --> 00:06:36,729 RECEIVE THIS AWARD. 181 00:06:36,796 --> 00:06:39,632 THIS IS A BIG DEAL, OKAY, IN 182 00:06:39,699 --> 00:06:42,068 CASE YOU WERE WONDERING, AND WE 183 00:06:42,135 --> 00:06:44,670 ARE VERY, VERY PROUD OF STEVE 184 00:06:44,737 --> 00:06:47,974 AND OBVIOUSLY RICHLY, RICHLY 185 00:06:48,040 --> 00:06:52,745 DESERVED. 186 00:06:52,812 --> 00:06:54,614 >> WHEN WAS THAT? 187 00:06:54,680 --> 00:06:54,747 IS 188 00:06:54,814 --> 00:06:58,651 >IS>> WHEN WAS THAT? 189 00:06:58,718 --> 00:06:59,952 DO YOU RECALL? 190 00:07:00,019 --> 00:07:01,921 IT WAS SEVERAL MONTHS AGO. 191 00:07:01,988 --> 00:07:02,822 NEXT, PLEASE. 192 00:07:02,889 --> 00:07:04,457 TWO OF THE NOBLE LAUREATES THIS 193 00:07:04,524 --> 00:07:07,493 YEAR, PHYSIOLOGY OR MEDICINE ARE 194 00:07:07,560 --> 00:07:09,162 NIH GRANTEES FOR THEIR WORK, OF 195 00:07:09,228 --> 00:07:11,798 COURSE, IN FIGURING OUT HOW TO 196 00:07:11,864 --> 00:07:14,433 STABILIZE MRNA. 197 00:07:14,500 --> 00:07:18,771 THAT SORT OF TURNED OUT TO BE AN 198 00:07:18,838 --> 00:07:19,639 IMPORTANT DISCOVERY. 199 00:07:19,705 --> 00:07:22,308 ALTHOUGH AT THE TIME, MANY 200 00:07:22,375 --> 00:07:23,976 PEOPLE WERE SKEPTICAL THAT IT 201 00:07:24,043 --> 00:07:26,913 WOULD HAVE ANY REAL VALUE. 202 00:07:26,979 --> 00:07:28,181 IN ADDITION TO HONORING THE 203 00:07:28,247 --> 00:07:29,949 NOBLE LAUREATES, OF COURSE IT 204 00:07:30,016 --> 00:07:31,083 ALSO GIVES ME THE OPPORTUNITY TO 205 00:07:31,150 --> 00:07:32,251 REMIND EVERYBODY THAT BASIC 206 00:07:32,318 --> 00:07:34,187 RESEARCH REALLY DOES MATTER. 207 00:07:34,253 --> 00:07:36,622 AND OBVIOUSLY THIS IS ANOTHER OF 208 00:07:36,689 --> 00:07:39,992 MANY, MANY EXAMPLES. 209 00:07:40,059 --> 00:07:43,396 AND THEN WE'VE DONE VERY WELL 210 00:07:43,462 --> 00:07:44,697 REGARDING NIH STAFF BEING 211 00:07:44,764 --> 00:07:46,866 ELECTED TO VARIOUS PARTS OF THE 212 00:07:46,933 --> 00:07:48,534 NATIONAL ACADEMIES. 213 00:07:48,601 --> 00:07:51,804 AS YOU SEE, ANDRE AND JOHN, 214 00:07:51,871 --> 00:07:53,039 MEMBERS OF THE NATIONAL ACADEMY 215 00:07:53,105 --> 00:07:54,540 OF SCIENCES. 216 00:07:54,607 --> 00:07:56,442 BRUCE TROMBERG ELECTED VERY 217 00:07:56,509 --> 00:07:58,077 RECENTLY TO THE NATIONAL ACADEMY 218 00:07:58,144 --> 00:08:00,580 OF ENGINEERING, AND THEN TWO OF 219 00:08:00,646 --> 00:08:03,616 OUR INSTITUTE DIRECTORS, MIKE 220 00:08:03,683 --> 00:08:05,484 CHIANG AND ERIC GREEN ELECTED TO 221 00:08:05,551 --> 00:08:06,452 THE NATIONAL ACADEMY OF 222 00:08:06,519 --> 00:08:07,587 MEDICINE, WHICH A LONG TIME AGO 223 00:08:07,653 --> 00:08:09,088 WAS KNOWN AS THE INSTITUTE OF 224 00:08:09,155 --> 00:08:10,423 MEDICINE, IN CASE ANYBODY IS 225 00:08:10,489 --> 00:08:13,326 WONDERING WHAT THIS NATIONAL 226 00:08:13,392 --> 00:08:14,927 ACADEMY OF MEDICINE IS. 227 00:08:14,994 --> 00:08:15,795 SO CONGRATULATIONS TO ALL OF 228 00:08:15,862 --> 00:08:17,630 THESE FOLKS. 229 00:08:17,697 --> 00:08:18,531 OKAY. 230 00:08:18,598 --> 00:08:21,133 SOME EVENTS NEXT. 231 00:08:21,200 --> 00:08:22,869 THIS IS A PRETTY BIG DEAL. 232 00:08:22,935 --> 00:08:24,837 THIS IS AN INITIATIVE ON WOMEN'S 233 00:08:24,904 --> 00:08:28,541 HEALTH RESEARCH, AND AS YOU SEE, 234 00:08:28,608 --> 00:08:33,179 PRESIDENT BIDEN IS SIGNING THIS 235 00:08:33,246 --> 00:08:35,581 PROCLAMATION, EXECUTIVE ORDER, 236 00:08:35,648 --> 00:08:37,316 AND FLANKED BY A NUMBER OF 237 00:08:37,383 --> 00:08:42,021 FOLKS, INCLUDING SECRETARY 238 00:08:42,088 --> 00:08:46,392 BECERRA, DR. BERTAGNOLLI, AND 239 00:08:46,459 --> 00:08:49,362 DR. JANINE CLAYTON. 240 00:08:49,428 --> 00:08:51,330 OBVIOUSLY EVERYBODY VERY, VERY 241 00:08:51,397 --> 00:08:52,632 PLEASED ABOUT THIS. 242 00:08:52,698 --> 00:08:53,833 AND STAY TUNED, THERE'S GOING TO 243 00:08:53,900 --> 00:08:55,701 BE A LOT OF ACTIVITY IN THIS 244 00:08:55,768 --> 00:08:56,903 SPACE GOING FORWARD. 245 00:08:56,969 --> 00:09:01,707 WE'RE VERY, VERY EXCITED. 246 00:09:01,774 --> 00:09:05,111 SO THIS WAS A VERY FUNNY TIME. 247 00:09:05,177 --> 00:09:08,047 I WAS STILL ACTING DIRECTOR OF 248 00:09:08,114 --> 00:09:10,516 NIH AND I WAS SAYING TO THE 249 00:09:10,583 --> 00:09:12,885 FIRST LADY, SO COULD YOU HURRY 250 00:09:12,952 --> 00:09:13,419 IT UP? 251 00:09:13,486 --> 00:09:15,187 BUT NO, THAT'S NOT REALLY WHAT I 252 00:09:15,254 --> 00:09:16,055 WAS SAYING. 253 00:09:16,122 --> 00:09:17,556 BUT AS YOU CAN SEE, 254 00:09:17,623 --> 00:09:19,225 DR. BERTAGNOLLI WAS WITH US 255 00:09:19,292 --> 00:09:23,696 ALONG WITH JIM, AND JENNY LUCCA 256 00:09:23,763 --> 00:09:25,865 FROM THE CHILDREN'S INN, 257 00:09:25,932 --> 00:09:32,538 WELCOMING THE FIRST LADY AND -- 258 00:09:32,605 --> 00:09:33,773 I'M NOT EXACTLY SURE WHAT THE 259 00:09:33,839 --> 00:09:36,909 TECHNICAL TERM IS, BUT FROM 260 00:09:36,976 --> 00:09:39,445 AUSTRALIA, HER COUNTERPART. 261 00:09:39,512 --> 00:09:43,182 AND THEY WERE VISITING REALLY 262 00:09:43,249 --> 00:09:45,051 THE CLINICAL CENTER AND THE 263 00:09:45,117 --> 00:09:45,885 NATIONAL CANCER INSTITUTE, AND I 264 00:09:45,952 --> 00:09:47,420 THINK THREE DAYS LATER, 265 00:09:47,486 --> 00:09:48,321 DR. BERTAGNOLLI BECAME THE 266 00:09:48,387 --> 00:09:49,722 DIRECTOR. 267 00:09:49,789 --> 00:09:52,358 SO -- BUT IT WAS WONDERFUL TO 268 00:09:52,425 --> 00:09:54,327 WELCOME THEM. 269 00:09:54,393 --> 00:09:54,894 OKAY. 270 00:09:54,961 --> 00:09:57,096 AND THEN FINALLY, AND OF COURSE 271 00:09:57,163 --> 00:10:01,200 A TOPIC OF VERY SIGNIFICANT 272 00:10:01,267 --> 00:10:02,835 IMPORTANCE, IS WHAT WE'RE DOING 273 00:10:02,902 --> 00:10:05,805 IN TERMS OF TRYING TO SUPPORT 274 00:10:05,871 --> 00:10:06,739 INDIVIDUALS WITH DISABILITIES IN 275 00:10:06,806 --> 00:10:07,573 THE BIOMEDICAL RESEARCH 276 00:10:07,640 --> 00:10:13,779 WORKFORCE. 277 00:10:13,846 --> 00:10:14,947 ONE OF THE THINGS WE HAVE HEARD 278 00:10:15,014 --> 00:10:16,182 FROM MANY STAKEHOLDERS IS THAT 279 00:10:16,248 --> 00:10:17,616 OUR CURRENT MISSION STATEMENT, 280 00:10:17,683 --> 00:10:22,321 WHICH IS DISPLAYED ON THE LEFT, 281 00:10:22,388 --> 00:10:27,360 IS OUT OF TOUCH WITH SOME 282 00:10:27,426 --> 00:10:29,428 CURRENT THINKING AMONG MANY, NOT 283 00:10:29,495 --> 00:10:30,863 ALL, AMONG MANY IN THE 284 00:10:30,930 --> 00:10:32,164 DISABILITIES COMMUNITY. 285 00:10:32,231 --> 00:10:34,133 AND SO YOU SEE THE STATEMENT 286 00:10:34,200 --> 00:10:38,070 THAT IT ENDS WITH -- AND REDUCE 287 00:10:38,137 --> 00:10:39,505 ILLNESS AND DISABILITY. 288 00:10:39,572 --> 00:10:41,140 AND THERE ARE MANY IN THE 289 00:10:41,207 --> 00:10:42,975 DISABILITY COMMUNITY WHO FEEL 290 00:10:43,042 --> 00:10:46,379 THAT THIS IMPLIES SOMEHOW THAT 291 00:10:46,445 --> 00:10:48,114 THERE'S -- THAT THEY ARE 292 00:10:48,180 --> 00:10:48,748 DEFECTIVE OR THERE'S SOMETHING 293 00:10:48,814 --> 00:10:50,649 WRONG WITH THEM, AND THEY REALLY 294 00:10:50,716 --> 00:10:51,984 DON'T FEEL THAT THEY NEED, 295 00:10:52,051 --> 00:10:55,921 QUOTE, FIXING. 296 00:10:55,988 --> 00:10:57,423 WE HAVE ISSUED A REQUEST FOR 297 00:10:57,490 --> 00:10:58,891 INFORMATION ABOUT THIS TO GET A 298 00:10:58,958 --> 00:11:02,628 BETTER UNDERSTANDING OF HOW THE 299 00:11:02,695 --> 00:11:03,896 WHOLE COMMUNITY OR AT LEAST AS 300 00:11:03,963 --> 00:11:06,499 MANY PEOPLE WHO ARE WILLING TO 301 00:11:06,565 --> 00:11:08,034 CONTRIBUTE THEIR THOUGHTS FEEL. 302 00:11:08,100 --> 00:11:11,337 WE HAVE A PROPOSED REVISION 303 00:11:11,404 --> 00:11:15,007 WHICH WOULD END TO OP MIEZ 304 00:11:15,074 --> 00:11:16,275 HEALTH AND PREVENT OR REDUCE 305 00:11:16,342 --> 00:11:17,576 ILLNESS FOR ALL. 306 00:11:17,643 --> 00:11:18,677 APPARENTLY MANY PEOPLE HAVE 307 00:11:18,744 --> 00:11:20,746 TAKEN UMBRAGE AT THE FACT THAT 308 00:11:20,813 --> 00:11:24,884 IN APPROPRIATING APPROPRIATE --G 309 00:11:24,950 --> 00:11:27,953 THIS REVISION, WE TOOK OUT 310 00:11:28,020 --> 00:11:29,922 "LENGTHEN LIFE," AND THAT HAS 311 00:11:29,989 --> 00:11:33,692 CONCERNED A LOT OF PEOPLE. 312 00:11:33,759 --> 00:11:35,428 THEY HAVE MISINTERPRETED THAT TO 313 00:11:35,494 --> 00:11:36,529 MEAN ALL SORTS OF THINGS THAT 314 00:11:36,595 --> 00:11:39,365 ARE NOT CORRECT, AND SO WE'RE 315 00:11:39,432 --> 00:11:42,735 GOING TO OBVIOUSLY RE-THINK THAT 316 00:11:42,802 --> 00:11:46,939 "LENGTHEN LIFE" PIECE OF THIS. 317 00:11:47,006 --> 00:11:48,007 BUT THAT'S WHAT OUR WORKING 318 00:11:48,074 --> 00:11:49,375 DOCUMENTS ARE, THE CURRENT 319 00:11:49,442 --> 00:11:53,779 VERSUS THE PROPOSED. 320 00:11:53,846 --> 00:11:55,881 SO WE DID SEND OUT A REQUEST FOR 321 00:11:55,948 --> 00:11:56,916 INFORMATION INVITING COMMENTS 322 00:11:56,982 --> 00:12:00,086 AND SUGGESTIONS. 323 00:12:00,152 --> 00:12:00,820 THIS CLOSED BACK IN NOVEMBER. 324 00:12:00,886 --> 00:12:02,354 WE HAD A VERY STRONG RESPONSE. 325 00:12:02,421 --> 00:12:04,757 WE ARE ANALYZING ALL OF THE 326 00:12:04,824 --> 00:12:05,458 RESPONSES. 327 00:12:05,524 --> 00:12:07,593 I THINK IT'S QUITE CLEAR FROM 328 00:12:07,660 --> 00:12:10,463 THE RESPONSES AND THE RANGE OF 329 00:12:10,529 --> 00:12:12,364 RESPONSES THAT WE'VE RECEIVED 330 00:12:12,431 --> 00:12:14,900 THAT WE WILL PROBABLY NEED TO DO 331 00:12:14,967 --> 00:12:16,102 ADDITIONAL FACT-FINDING THROUGH 332 00:12:16,168 --> 00:12:19,305 THE USE OF FOCUS GROUPS OR TOWN 333 00:12:19,371 --> 00:12:22,675 HALL MEETINGS OR ROUNDTABLE 334 00:12:22,741 --> 00:12:26,846 DISCUSSIONS, PERHAPS ALL OF THE 335 00:12:26,912 --> 00:12:28,247 ABOVE, BECAUSE NOT SURPRISINGLY, 336 00:12:28,314 --> 00:12:29,448 THERE WAS NO ONE VOICE THAT 337 00:12:29,515 --> 00:12:30,749 SPEAKS FOR THE DISABILITY 338 00:12:30,816 --> 00:12:32,084 COMMUNITY SINCE IT'S SO 339 00:12:32,151 --> 00:12:32,418 HETEROGENEOUS. 340 00:12:32,485 --> 00:12:36,122 BUT WE ARE DETERMINED TO TRY AND 341 00:12:36,188 --> 00:12:39,191 GET THIS MORE UPDATED TO REFLECT 342 00:12:39,258 --> 00:12:42,995 AT LEAST SOME COMMON CONSENSUS 343 00:12:43,062 --> 00:12:46,298 THAT WILL EXIST, AND SO STAY 344 00:12:46,365 --> 00:12:48,167 TUNED, WE WILL BE BACK TO YOU OR 345 00:12:48,234 --> 00:12:49,468 I SHOULD SAY DR. SCHOR WILL BE 346 00:12:49,535 --> 00:12:53,205 BACK TO YOU TO TELL YOU WHERE 347 00:12:53,272 --> 00:12:59,011 THIS STANDS IN THE FUTURE. 348 00:12:59,078 --> 00:13:00,412 >> 349 00:13:00,479 --> 00:13:01,614 [INAUDIBLE QUESTION ?CHT 350 00:13:01,680 --> 00:13:05,284 >> 351 00:13:05,351 --> 00:13:06,986 >> OH, INDEED. 352 00:13:07,052 --> 00:13:11,123 IN FACT, IN SEPTEMBER, NIMHD 353 00:13:11,190 --> 00:13:12,591 ISSUED A FUNDING OPPORTUNITY 354 00:13:12,658 --> 00:13:13,759 ANNOUNCEMENT FOR RESEARCH ON 355 00:13:13,826 --> 00:13:15,628 APPROACHES AND INTERVENTIONS TO 356 00:13:15,694 --> 00:13:17,129 ADDRESS THE INTERSECTION OF 357 00:13:17,196 --> 00:13:21,300 DISABILITY, RACE, ETHNICITY AND 358 00:13:21,367 --> 00:13:22,101 SOCIOECONOMIC STATUS. 359 00:13:22,168 --> 00:13:25,471 HEALTH DISPARITY DESIGNATIONS 360 00:13:25,538 --> 00:13:27,706 ARE THE PURVIEW OF THE DIRECTOR 361 00:13:27,773 --> 00:13:33,179 OF THE NIMHD IN CONSULTATION 362 00:13:33,245 --> 00:13:38,918 WITH THE DIRECTOR OF HRQ. 363 00:13:38,984 --> 00:13:42,221 AND DR. PEREZ-STABLE DID 364 00:13:42,288 --> 00:13:43,289 DESIGNATE DISABILITIES AS A 365 00:13:43,355 --> 00:13:47,493 HEALTH DISPARITY GROUP, AND AS 366 00:13:47,560 --> 00:13:49,094 ONE RESPONSE TO THIS, THERE ARE 367 00:13:49,161 --> 00:13:50,963 A NUMBER OF OTHERS THAT ARE 368 00:13:51,030 --> 00:13:53,332 BEING PLANNED, THEY HAVE HAD 369 00:13:53,399 --> 00:13:55,868 THIS FUNDING ANNOUNCEMENT OUT, 370 00:13:55,935 --> 00:14:00,139 AND WITH A PRETTY GOOD RESPONSE. 371 00:14:00,206 --> 00:14:02,908 SO THERE IS BOTH EXPERTISE AND 372 00:14:02,975 --> 00:14:04,843 INTEREST IN THE RESEARCH 373 00:14:04,910 --> 00:14:06,245 COMMUNITY TO BEGIN TO ADDRESS 374 00:14:06,312 --> 00:14:10,216 THESE THINGS IN A MORE FORMAL 375 00:14:10,282 --> 00:14:12,051 MANNER. 376 00:14:12,117 --> 00:14:15,454 AND SO THERE IS A GREAT DEAL 377 00:14:15,521 --> 00:14:17,089 MORE -- WHAT WE HAD REFERRED TO 378 00:14:17,156 --> 00:14:21,594 AS DEI FOR SO LONG IS NOW DEIA, 379 00:14:21,660 --> 00:14:26,165 TO INCLUDE ACCESSIBILITY, AND I 380 00:14:26,232 --> 00:14:27,600 THINK OBVIOUSLY APPROPRIATELY 381 00:14:27,666 --> 00:14:31,103 SO, AND OUR OWN COMMUNITY HERE 382 00:14:31,170 --> 00:14:36,442 WITHIN NIH HAS BEEN VERY ACTIVE 383 00:14:36,508 --> 00:14:37,543 IN PROVIDING US WITH THEIR 384 00:14:37,610 --> 00:14:42,147 INPUT, WHICH HAS BEEN INVALU 385 00:14:42,214 --> 00:14:42,448 INVALUABLE. 386 00:14:42,514 --> 00:14:43,882 AND AGAIN, MIRRORS THE 387 00:14:43,949 --> 00:14:45,751 HETEROGENEITY THAT EXISTS IN THE 388 00:14:45,818 --> 00:14:52,324 ENTIRE COMMUNITY. 389 00:14:52,391 --> 00:14:54,260 SO IT'S NON-TRIVIAL, IT'S 390 00:14:54,326 --> 00:14:55,961 COMPLICATED SETS OF ISSUES. 391 00:14:56,028 --> 00:14:58,097 THE MOST IMPORTANT THING, OF 392 00:14:58,163 --> 00:14:59,965 COURSE, IS WHAT CAN WE DO TO 393 00:15:00,032 --> 00:15:05,204 ENHANCE THE LIVES OF ALL 394 00:15:05,271 --> 00:15:06,872 INDIVIDUALS, INCLUDING THOSE WHO 395 00:15:06,939 --> 00:15:13,412 HAVE A DISABILITY. 396 00:15:13,479 --> 00:15:14,947 SO WE DO HAVE A DISABILITY 397 00:15:15,014 --> 00:15:17,416 SUBGROUP OF OUR DEIA WORKING 398 00:15:17,483 --> 00:15:19,652 GROUP, AND THEY ARE FOCUSING ON 399 00:15:19,718 --> 00:15:23,589 THINGS RELATED TO THE CULTURE OF 400 00:15:23,656 --> 00:15:26,458 VARIOUS DISABILITY COMMUNITIES 401 00:15:26,525 --> 00:15:28,627 ON ABLEISM, THAT IS, THOSE 402 00:15:28,694 --> 00:15:30,162 WITHOUT DISABILITIES, SORT OF 403 00:15:30,229 --> 00:15:31,697 IMPLYING THAT, WELL, YOU KNOW, 404 00:15:31,764 --> 00:15:36,502 WE HAVE TO FIX YOU, WE HAVE 405 00:15:36,568 --> 00:15:39,438 TO -- AND THIS IS SOMETHING THAT 406 00:15:39,505 --> 00:15:43,709 FOR MANY IS NOT ACCEPTABLE. 407 00:15:43,776 --> 00:15:45,010 THEN JUST IN GENERAL, OUR 408 00:15:45,077 --> 00:15:46,645 RESEARCH POLICIES AND SYSTEMS TO 409 00:15:46,712 --> 00:15:50,049 ENSURE THAT WE ARE INCLUSIVE OF 410 00:15:50,115 --> 00:15:50,382 ALL. 411 00:15:50,449 --> 00:15:52,184 I MEAN, JUST TO GIVE YOU ONE 412 00:15:52,251 --> 00:15:53,018 VERY SIMPLE EXAMPLE OF SOME OF 413 00:15:53,085 --> 00:15:58,290 THE RESEARCH THAT WAS INFLUENCED 414 00:15:58,357 --> 00:16:01,026 IN A VERY POSITIVE WAY BY ALL OF 415 00:16:01,093 --> 00:16:02,428 THESE EFFORTS IS WE WERE 416 00:16:02,494 --> 00:16:03,729 INSTRUMENTAL IN CREATING A 417 00:16:03,796 --> 00:16:05,264 NUMBER OF POINT OF CARE 418 00:16:05,331 --> 00:16:06,899 DIAGNOSTIC TESTS FOR COVID. 419 00:16:06,965 --> 00:16:07,900 FINALLY SOMEBODY SAID, WELL, 420 00:16:07,966 --> 00:16:10,903 THESE TESTS ARE GREAT, BUT IF 421 00:16:10,969 --> 00:16:13,672 YOU ARE SIGHT-IMPAIRED, THEY 422 00:16:13,739 --> 00:16:19,044 DON'T DO VERY MUCH FOR YOU. 423 00:16:19,111 --> 00:16:19,678 OH! 424 00:16:19,745 --> 00:16:23,182 SO, YOU KNOW, THE METAPHORICAL 425 00:16:23,248 --> 00:16:24,316 LIGHT BULB GOES OFF. 426 00:16:24,383 --> 00:16:26,685 SO NOW NIBIB HAS DEVELOPED AN 427 00:16:26,752 --> 00:16:30,756 APPROPRIATE SOLUTION TO THAT, 428 00:16:30,823 --> 00:16:34,360 WHERE THE TEST READS OUT WITH AN 429 00:16:34,426 --> 00:16:36,528 AUDITORY SIGNAL AND SO FORTH. 430 00:16:36,595 --> 00:16:40,799 AND YOU CAN SEE HOW IN SO MANY 431 00:16:40,866 --> 00:16:41,567 INSTANCES, HOWEVER WELL 432 00:16:41,633 --> 00:16:42,568 INTENDED, WE DON'T QUITE MAKE 433 00:16:42,634 --> 00:16:44,303 THE MARK. 434 00:16:44,370 --> 00:16:45,604 FORTUNATELY, AND I HOPE THIS 435 00:16:45,671 --> 00:16:47,906 CONTINUES TO BE ENHANCED, BY 436 00:16:47,973 --> 00:16:50,209 REACHING OUT TO THE VARIOUS 437 00:16:50,275 --> 00:16:52,778 COMMUNITIES AND INCREASING THE 438 00:16:52,845 --> 00:16:56,014 DIALOGUE, WE WILL BECOME BETTER 439 00:16:56,081 --> 00:16:56,982 EDUCATED AND, THEREFORE, WE WILL 440 00:16:57,049 --> 00:16:58,851 BE ABLE TO RESPOND IN A MORE 441 00:16:58,917 --> 00:17:01,620 APPROPRIATE MANNER. 442 00:17:01,687 --> 00:17:06,658 SO THIS HAPPEN A VERY GOOD 443 00:17:06,725 --> 00:17:09,395 OPPORTUNITY FOR ALL OF US. 444 00:17:09,461 --> 00:17:13,432 SO WITH THAT, I WILL SAY WE ARE 445 00:17:13,499 --> 00:17:14,767 NOW GOING TO HAVE THIS 446 00:17:14,833 --> 00:17:17,703 TRANSITION WHERE THE HOSPITAL 447 00:17:17,770 --> 00:17:20,906 BOARD WILL BE BROUGHT TO THE 448 00:17:20,973 --> 00:17:23,275 CLINICAL CENTER. 449 00:17:23,342 --> 00:17:25,344 DR. SCHOR WILL SERVE THIS 450 00:17:25,411 --> 00:17:29,415 DESIGNATED OFFICIAL ROLE GOING 451 00:17:29,481 --> 00:17:31,283 FORWARD, AND WHILE I'M SURE 452 00:17:31,350 --> 00:17:32,918 DR. BERTAGNOLLI WOULD WELCOME AN 453 00:17:32,985 --> 00:17:34,753 INVITATION FOR A FUTURE MEETING, 454 00:17:34,820 --> 00:17:36,955 INDEED THE TYPICAL CADENCE WILL 455 00:17:37,022 --> 00:17:38,390 BE THAT DR. SCHOR WILL PERFORM 456 00:17:38,457 --> 00:17:44,062 THIS OPENING DUTY AS I HAVE. 457 00:17:44,129 --> 00:17:45,364 WITH THAT, I THANK YOU ALL AND 458 00:17:45,431 --> 00:17:46,231 TURN IT BACK TO THE CHAIR. 459 00:17:46,298 --> 00:17:48,066 >> WELL, DR. TABAK, THANK YOU SO 460 00:17:48,133 --> 00:17:48,534 VERY MUCH. 461 00:17:48,600 --> 00:17:49,902 I THINK WE ALL WANT TO THANK YOU 462 00:17:49,968 --> 00:17:50,836 VERY MUCH FOR YOUR TIME SPENT 463 00:17:50,903 --> 00:17:53,472 WITH THE BOARD AND NEVER SAY 464 00:17:53,539 --> 00:17:54,506 NEVER, YOU'RE WELCOME BACK AT 465 00:17:54,573 --> 00:17:55,140 ANY TIME, SO THANK YOU VERY 466 00:17:55,207 --> 00:18:00,145 MUCH. 467 00:18:00,212 --> 00:18:01,346 AND WITH THIS I'D LIKE TO TURN 468 00:18:01,413 --> 00:18:04,283 IT OVER TO DR. JIM GILMAN, THE 469 00:18:04,349 --> 00:18:04,483 CEO -- 470 00:18:04,550 --> 00:18:06,485 >> I'D LIKE TO START BY LETTING 471 00:18:06,552 --> 00:18:11,423 YOU ALL KNOW THAT DR. RATHMEL, 472 00:18:11,490 --> 00:18:12,124 THE NATIONAL CANCER INSTITUTE 473 00:18:12,191 --> 00:18:13,492 DIRECTOR AND IS THE CHAIR OF THE 474 00:18:13,559 --> 00:18:14,726 CLINICAL CENTER GOVERNING BOARD, 475 00:18:14,793 --> 00:18:17,196 WHICH IS THE GROUP THAT FUNDS 476 00:18:17,262 --> 00:18:19,598 THE CLINICAL CENTER, APPROVES 477 00:18:19,665 --> 00:18:22,134 OUR BUDGET, HAS ALSO JOINED US. 478 00:18:22,201 --> 00:18:25,070 IT'S VERY GOOD TO HAVE HER HERE, 479 00:18:25,137 --> 00:18:26,405 AND I'M NOT SURE HOW LONG SHE'LL 480 00:18:26,472 --> 00:18:30,542 BE ABLE TO BE WITH US BUT HOPE 481 00:18:30,609 --> 00:18:32,511 YOU GET A CHANCE TO MEET HER. 482 00:18:32,578 --> 00:18:34,379 AND AS LARRY SAID, HAS HIT THE 483 00:18:34,446 --> 00:18:39,651 GROUND RUNNING ESPECIALLY TAKEN 484 00:18:39,718 --> 00:18:41,153 HOLD OF SOME CONCERNS WE HAVE 485 00:18:41,220 --> 00:18:45,324 RELATED TO THE -- MORE OF THE 486 00:18:45,390 --> 00:18:47,092 2025 BUDGET THAN THE 2024 BUDGET 487 00:18:47,159 --> 00:18:49,027 TO TRY TO HELP US BE ABLE TO 488 00:18:49,094 --> 00:18:52,431 MEET SOME CHALLENGES THAT WE SEE 489 00:18:52,498 --> 00:18:56,301 IN THAT BUDGET IN ORDER TO 490 00:18:56,368 --> 00:18:58,437 CONTINUE TO DO WHAT WE DO IN THE 491 00:18:58,504 --> 00:18:59,338 CLINICAL CENTER. 492 00:18:59,404 --> 00:19:04,443 SO VERY HAPPY TO HAVE 493 00:19:04,510 --> 00:19:08,947 DR. RATHMEL HERE. 494 00:19:09,014 --> 00:19:15,187 AND IN TERMS OF DR. TABAK'S 495 00:19:15,254 --> 00:19:18,357 TRANSITION, I'M USED TO PEOPLE 496 00:19:18,423 --> 00:19:21,860 IN MY LEADERSHIP CHAIN WHO ARE 497 00:19:21,927 --> 00:19:26,131 WILLING TO TELL THE TRUTH AND TO 498 00:19:26,198 --> 00:19:29,935 BE REALISTIC AND TO LISTEN TO 499 00:19:30,002 --> 00:19:33,105 WHAT I THINK ARE REALISTIC 500 00:19:33,171 --> 00:19:37,276 ISSUES, AND DR. TABAK HAS ALWAYS 501 00:19:37,342 --> 00:19:39,878 BEEN THAT FOR THE LAST SEVEN 502 00:19:39,945 --> 00:19:42,548 YEARS FOR ME. 503 00:19:42,614 --> 00:19:46,685 AND I'VE MADE MY OWN TRANSITION 504 00:19:46,752 --> 00:19:49,321 OUT OF THE ACTING DIRECTOR'S 505 00:19:49,388 --> 00:19:49,755 ROLE. 506 00:19:49,821 --> 00:19:52,391 I MADE A TOKEN OF MY -- GAVE HIM 507 00:19:52,457 --> 00:19:55,494 A TOKEN OF MY APPRECIATION AND I 508 00:19:55,561 --> 00:19:58,030 WON'T GO INTO THAT HERE BUT IT 509 00:19:58,096 --> 00:20:02,301 IS -- BUT THE TOKEN IS MY 510 00:20:02,367 --> 00:20:03,802 HIGHEST ESTEEM FOR PEOPLE THAT I 511 00:20:03,869 --> 00:20:07,039 HAVE LOOKED UP TO. 512 00:20:07,105 --> 00:20:08,874 AND SO LARRY PERSONALLY AND 513 00:20:08,941 --> 00:20:16,014 PUBLICLY, THANKS SO MUCH. 514 00:20:16,081 --> 00:20:17,082 I THINK WE'VE COVERED THIS 515 00:20:17,149 --> 00:20:18,317 PRETTY WELL BY NOW. 516 00:20:18,383 --> 00:20:20,152 SO I'LL -- THIS SLIDE WILL GO 517 00:20:20,218 --> 00:20:22,020 PRETTY FAST HERE. 518 00:20:22,087 --> 00:20:26,725 AND YOU ALL KNOW THAT DR. SC 519 00:20:26,792 --> 00:20:27,726 DR. SCHOR -- DR. SCHOR AND I 520 00:20:27,793 --> 00:20:29,227 CONNECTED NOT TOO LONG AFTER HER 521 00:20:29,294 --> 00:20:33,365 ARRIVAL HERE AT NIH FROM 522 00:20:33,432 --> 00:20:36,935 ROCHESTER, NEW YORK, AND AS SORT 523 00:20:37,002 --> 00:20:39,304 OF WE WERE KIND OF NIH OUTSIDERS 524 00:20:39,371 --> 00:20:40,872 AT THE OUTSET, AND SO WE HAD 525 00:20:40,939 --> 00:20:45,043 SOMETHING IN COMMON. 526 00:20:45,110 --> 00:20:45,911 I WAS INTERESTED IN SOMEBODY 527 00:20:45,978 --> 00:20:47,212 THAT WOULD HELP ME GUIDE THIS 528 00:20:47,279 --> 00:20:50,082 LONG PATH THAT WE'VE BEEN ON TO 529 00:20:50,148 --> 00:20:51,083 TAKING CARE OF MORE CHILDREN, 530 00:20:51,149 --> 00:20:52,317 TAKING CARE OF CHILDREN THAT ARE 531 00:20:52,384 --> 00:20:54,486 A LITTLE SMALLER AND A LITTLE 532 00:20:54,553 --> 00:20:55,854 SICKER, AND DOING IMPORTANT 533 00:20:55,921 --> 00:20:57,422 RESEARCH THAT INVOLVED THAT 534 00:20:57,489 --> 00:20:59,458 PATIENT POPULATION, AND IT TOOK 535 00:20:59,524 --> 00:21:01,760 ME ABOUT 15 MINUTES AFTER I 536 00:21:01,827 --> 00:21:04,162 HEARD WHO SHE WAS AND WHERE SHE 537 00:21:04,229 --> 00:21:06,798 CAME FROM TO FIGURE OUT THAT I 538 00:21:06,865 --> 00:21:08,634 WANTED HER INVOLVED, AND SHE HAS 539 00:21:08,700 --> 00:21:09,868 BEEN -- SHE'S BEEN THERE FOR 540 00:21:09,935 --> 00:21:10,636 THAT SINCE. 541 00:21:10,702 --> 00:21:12,604 AND THERE'S A LOT OF TODAY'S 542 00:21:12,671 --> 00:21:14,373 MEETING THAT HAS TO DO WITH THIS 543 00:21:14,439 --> 00:21:17,576 TOPIC. 544 00:21:17,643 --> 00:21:20,479 I WANT TO CONGRATULATE VAN FOR 545 00:21:20,545 --> 00:21:21,813 SUCCESSFUL COMPLETION OF HIS 546 00:21:21,880 --> 00:21:25,951 CAREER AT HOLY CROSS, TRINITY 547 00:21:26,018 --> 00:21:27,486 HEALTH, AND VERY HAPPY FOR YOU 548 00:21:27,552 --> 00:21:29,354 ALL TO KNOW THAT HE'S NOT 549 00:21:29,421 --> 00:21:30,122 RETIRING FROM THE CLINICAL 550 00:21:30,188 --> 00:21:32,391 CENTER RESEARCH HOSPITAL BOARD, 551 00:21:32,457 --> 00:21:34,926 AND HE'LL BE WITH US IN THAT 552 00:21:34,993 --> 00:21:39,931 CAPACITY GOING FORWARD. 553 00:21:39,998 --> 00:21:40,799 AT LEAST I THINK SO. 554 00:21:40,866 --> 00:21:43,235 WE LIKE TO BRAG ABOUT OUR AWARD 555 00:21:43,301 --> 00:21:45,303 RECIPIENTS AS WELL. 556 00:21:45,370 --> 00:21:46,972 AGAIN, CLINICAL RECOGNITION WAS 557 00:21:47,039 --> 00:21:50,242 NOT MUCH OF A FEATURE OF THE 558 00:21:50,308 --> 00:21:52,244 CLINICAL CENTER WHEN I ARRIVED 559 00:21:52,310 --> 00:21:52,744 SEVEN YEARS AGO. 560 00:21:52,811 --> 00:21:55,847 IT TOOK US A COUPLE YEARS TO PUT 561 00:21:55,914 --> 00:21:57,449 THESE RECOGNITION PROGRAMS IN 562 00:21:57,516 --> 00:22:01,286 PLACE AND WE RECOGNIZE EVERY 563 00:22:01,353 --> 00:22:04,456 YEAR ONE STAFF CLINICIAN AND 564 00:22:04,523 --> 00:22:06,958 THEN USUALLY THE AWARD IS 565 00:22:07,025 --> 00:22:10,295 SUPPOSED TO BE FOR ONE ADVANCED 566 00:22:10,362 --> 00:22:13,532 PRACTICE PROVIDER, BUT IT ALWAYS 567 00:22:13,598 --> 00:22:15,701 SEEMS LIKE THERE'S TWO THAT ARE 568 00:22:15,767 --> 00:22:20,205 ALWAYS KIND OF NECK-AND-NECK. 569 00:22:20,272 --> 00:22:23,475 SO THIS YEAR AS WE HAVE DONE AND 570 00:22:23,542 --> 00:22:24,876 A NUMBER OF OTHER YEARS, WE GAVE 571 00:22:24,943 --> 00:22:28,146 TWO AWARDS, ONE TO A PHYSICIAN 572 00:22:28,213 --> 00:22:28,780 ASSISTANT. 573 00:22:28,847 --> 00:22:29,915 THEY'RE BOTH NURSE 574 00:22:29,981 --> 00:22:32,451 PRACTITIONERS, I BELIEVE, AND 575 00:22:32,517 --> 00:22:35,620 BOTH THE WRITEUPS WERE JUST 576 00:22:35,687 --> 00:22:35,954 EXTRAORDINARY. 577 00:22:36,021 --> 00:22:37,289 USUALLY IT TAKES A COUPLE ROUNDS 578 00:22:37,355 --> 00:22:39,991 OF VOTING FOR US TO NECK IT DOWN 579 00:22:40,058 --> 00:22:42,728 TO SOMETHING WHERE THERE'S A 580 00:22:42,794 --> 00:22:45,997 CLEAR WINNER OR A COUPLE 581 00:22:46,064 --> 00:22:47,432 WINNERS, AND THEN ON THE 582 00:22:47,499 --> 00:22:48,867 ADMINISTRATIVE SIDE, WE DID HAVE 583 00:22:48,934 --> 00:22:53,338 A TIE THIS YEAR, AND YOU SEE 584 00:22:53,405 --> 00:22:59,010 THAT MARCUS MEANS WORKS WITH OUR 585 00:22:59,077 --> 00:23:00,545 HOSPITALITY AND VOLUNTEER 586 00:23:00,612 --> 00:23:02,748 SERVICES GROUP AND IS VERY WELL 587 00:23:02,814 --> 00:23:08,453 THOUGHT OF, AND DR. KATIE 588 00:23:08,520 --> 00:23:11,223 STAGLIANO HAS BEEN THE DEPUTY IN 589 00:23:11,289 --> 00:23:12,257 THE DEPARTMENT OF LABORATORY 590 00:23:12,324 --> 00:23:13,792 MEDICINE AND HAS REALLY MADE A 591 00:23:13,859 --> 00:23:15,660 DIFFERENCE IN TERMS OF THAT 592 00:23:15,727 --> 00:23:17,195 DEPARTMENT. 593 00:23:17,262 --> 00:23:19,030 AND SO WE WERE EXCITED TO HONOR 594 00:23:19,097 --> 00:23:20,999 THEM. 595 00:23:21,066 --> 00:23:23,435 WE HAD SOME -- WE HAD A NUMBER 596 00:23:23,502 --> 00:23:24,970 OF DIRECTORS' AWARDS. 597 00:23:25,036 --> 00:23:26,271 THIS IS THE NIH DIRECTOR, SO 598 00:23:26,338 --> 00:23:30,742 THIS IS THE AWARD AT THE NIH 599 00:23:30,809 --> 00:23:33,478 LEVEL WHO WERE HONORED, AND THEN 600 00:23:33,545 --> 00:23:35,247 WE HAD A VERY NICE -- THIS IS 601 00:23:35,313 --> 00:23:38,750 REALLY THE FIRST TIME SINCE THE 602 00:23:38,817 --> 00:23:40,952 START OF COVID THAT WE WERE ABLE 603 00:23:41,019 --> 00:23:42,554 TO HAVE OUR AWARD CEREMONY WHERE 604 00:23:42,621 --> 00:23:45,857 WE COULD ACTUALLY GET TOGETHER 605 00:23:45,924 --> 00:23:48,260 AND KIND OF ENJOY EACH OTHER, 606 00:23:48,326 --> 00:23:50,362 AND SO THE AWARD CEREMONY ITSELF 607 00:23:50,428 --> 00:23:54,599 WAS VIRTUAL BUT THEN WE HAD ONE 608 00:23:54,666 --> 00:23:57,102 OF THE OPEN TERRACES, INDOOR 609 00:23:57,169 --> 00:23:58,603 TERRACES AT THE CLINICAL CENTER 610 00:23:58,670 --> 00:24:00,172 ALL SET UP FOR PEOPLE TO COME BY 611 00:24:00,238 --> 00:24:02,808 AND PICK UP THEIR AWARDS AND SO 612 00:24:02,874 --> 00:24:04,309 I GOT TO HAVE MY PICTURE TAKEN 613 00:24:04,376 --> 00:24:06,311 WITH A BUNCH OF GREAT AMERICANS, 614 00:24:06,378 --> 00:24:07,279 AND SOMETIMES THEY WEREN'T 615 00:24:07,345 --> 00:24:08,814 AMERICANS. 616 00:24:08,880 --> 00:24:11,783 SOMETIMES THEY COME FROM OTHER 617 00:24:11,850 --> 00:24:15,554 PLACES, AND YOU CAN SEE THAT IT 618 00:24:15,620 --> 00:24:17,722 WAS REALLY A GOOD DAY AND ONE OF 619 00:24:17,789 --> 00:24:22,494 THE FIRST DAYS THAT WE COULD GET 620 00:24:22,561 --> 00:24:23,461 TOGETHER. 621 00:24:23,528 --> 00:24:25,463 A TRADITION OVER THE LAST 20 OR 622 00:24:25,530 --> 00:24:26,832 25 YEARS IN THE CLINICAL CENTER 623 00:24:26,898 --> 00:24:29,568 HAS BEEN THE GINGERBREAD HOUSE 624 00:24:29,634 --> 00:24:29,868 CONTEST. 625 00:24:29,935 --> 00:24:30,902 THIS IS THE FIRST YEAR SINCE THE 626 00:24:30,969 --> 00:24:33,004 START OF THE PANDEMIC THAT THE 627 00:24:33,071 --> 00:24:33,839 GINGERBREAD HOUSES WERE BACK, 628 00:24:33,905 --> 00:24:35,707 AND THAT MADE A HUGE DIFFERENCE 629 00:24:35,774 --> 00:24:35,941 TOO. 630 00:24:36,007 --> 00:24:40,212 THIS IS THE FIRST YEAR THAT WE 631 00:24:40,278 --> 00:24:41,346 ALLOWED VOCAL MUSIC IN THE 632 00:24:41,413 --> 00:24:43,148 CLINICAL CENTER. 633 00:24:43,215 --> 00:24:46,985 THERE'S A LONG-STANDING HISTORY 634 00:24:47,052 --> 00:24:49,187 OF MUSICAL PERFORMANCES IN THE 635 00:24:49,254 --> 00:24:51,022 ATRIUM OF THE CLINICAL CENTER. 636 00:24:51,089 --> 00:24:52,424 ANY OF YOU THAT HAVE BEEN THERE 637 00:24:52,490 --> 00:24:55,193 HAVE SEEN THAT BEAUTIFUL 638 00:24:55,260 --> 00:24:56,161 STEINWAY PIANO. 639 00:24:56,228 --> 00:24:59,564 DURING THE PANDEMIC ESPECIALLY 640 00:24:59,631 --> 00:25:00,632 THE EARLY PART, THERE WAS A LOT 641 00:25:00,699 --> 00:25:02,834 OF DISCUSSION THAT SINGING WAS A 642 00:25:02,901 --> 00:25:06,104 WAY OF TRANSMITTING THE VIRUS, 643 00:25:06,171 --> 00:25:08,940 AND SO WE CUT DOWN ON ALL THE 644 00:25:09,007 --> 00:25:10,175 VOCAL MUSIC AND FOR A WHILE, WE 645 00:25:10,242 --> 00:25:12,210 CUT DOWN ON WOOD WINDS AND BRASS 646 00:25:12,277 --> 00:25:13,879 AND ALL WE HAD WAS PERCUSSION 647 00:25:13,945 --> 00:25:17,148 INSTRUMENTS AND STRING STEUME 648 00:25:17,215 --> 00:25:17,883 STEUMENTS. 649 00:25:17,949 --> 00:25:20,685 WE FINALLY COULD HAVE ALL OF OUR 650 00:25:20,752 --> 00:25:22,921 HOLIDAY MUSIC DURING THE MONTH 651 00:25:22,988 --> 00:25:26,758 OF DECEMBER, AND IT WAS REALLY, 652 00:25:26,825 --> 00:25:27,225 REALLY GOOD. 653 00:25:27,292 --> 00:25:29,594 WE DID THAT WITHOUT HAVING ANY 654 00:25:29,661 --> 00:25:34,199 SIGNIFICANT INCREASE IN COVID 655 00:25:34,266 --> 00:25:36,868 POSITIVITY. 656 00:25:36,935 --> 00:25:42,607 SO THIS WAS A VERY ENJOYABLE 657 00:25:42,674 --> 00:25:43,642 HOLIDAY SEASON IN THE CLINICAL 658 00:25:43,708 --> 00:25:45,477 CENTER IN COMPARISON TO THE MORE 659 00:25:45,543 --> 00:25:45,877 RECENT ONES. 660 00:25:45,944 --> 00:25:48,313 WE HAVE A COUPLE OF NEW KEY 661 00:25:48,380 --> 00:25:49,714 STAFF MEMBERS ARRIVING THIS WEEK 662 00:25:49,781 --> 00:25:56,388 FROM OREGON IS DR. SALY GABRIEL, 663 00:25:56,454 --> 00:25:57,355 CHIEF OF THE PHARMACY 664 00:25:57,422 --> 00:25:57,956 DEPARTMENT. 665 00:25:58,023 --> 00:26:00,659 WE HAD INTERIM LEADERSHIP IN THE 666 00:26:00,725 --> 00:26:01,726 PHARMACY DEPARTMENT FOR THE LAST 667 00:26:01,793 --> 00:26:03,361 4 1/2 YEARS. 668 00:26:03,428 --> 00:26:06,264 AND WE THINK WE'RE CLOSING IN ON 669 00:26:06,331 --> 00:26:08,733 THE RENOVATION OF THE 670 00:26:08,800 --> 00:26:09,834 CONSTRUCTION OF THE LAST PART OF 671 00:26:09,901 --> 00:26:13,772 OUR NEW PHARMACY, AND SO WE 672 00:26:13,838 --> 00:26:14,873 FINALLY DECIDED WE WERE IN A 673 00:26:14,940 --> 00:26:17,709 POSITION TO GO OUT AND RECRUIT A 674 00:26:17,776 --> 00:26:22,380 NEW CHIEF OF PHARMACY. 675 00:26:22,447 --> 00:26:23,615 THAT'S A FAIRLY LONG PROCESS. 676 00:26:23,682 --> 00:26:25,150 I WON'T GO INTO WHY IT'S A VERY 677 00:26:25,216 --> 00:26:26,117 LONG PROCESS BUT YOU HAVE TO DO 678 00:26:26,184 --> 00:26:29,888 IT TWICE IN ORDER TO BE ABLE TO 679 00:26:29,955 --> 00:26:34,259 APPROXIMATE A MARKET RATE FOR 680 00:26:34,326 --> 00:26:35,460 SALARY. 681 00:26:35,527 --> 00:26:38,830 DR. HADIGAN LED THAT SEARCH. 682 00:26:38,897 --> 00:26:39,965 SHE WAS THE SELECTING OFFICIAL 683 00:26:40,031 --> 00:26:42,634 AND WE WERE VERY HAPPY WITH THE 684 00:26:42,701 --> 00:26:44,869 ARRIVAL OF DR. GABRIEL, GIVEN 685 00:26:44,936 --> 00:26:47,138 SOME HISTORY WITH THE PHARMACY, 686 00:26:47,205 --> 00:26:48,873 AND I'VE SPENT ABOUT 2 1/2 HOURS 687 00:26:48,940 --> 00:26:53,411 WITH DR. GABRIEL IN THE LAST TWO 688 00:26:53,478 --> 00:26:56,014 OR THREE DAYS AND I THINK -- AND 689 00:26:56,081 --> 00:27:00,885 SHE STILL COMES BACK, EVEN AFTER 690 00:27:00,952 --> 00:27:02,053 I'VE TOLD HER ABOUT SOME OF THE 691 00:27:02,120 --> 00:27:02,587 ISSUES. 692 00:27:02,654 --> 00:27:06,291 THIS IS ABOUT TAKING CARE OF HER 693 00:27:06,358 --> 00:27:07,826 STAFF IS REALLY, REALLY, REALLY 694 00:27:07,892 --> 00:27:09,461 IMPORTANT AND SHE UNDERSTANDS 695 00:27:09,527 --> 00:27:11,396 THAT AND AS A MATTER OF FACT SHE 696 00:27:11,463 --> 00:27:12,530 PRIDES HERSELF ON THAT AND THAT 697 00:27:12,597 --> 00:27:15,467 WILL BE REALLY IMPORTANT. 698 00:27:15,533 --> 00:27:18,403 IT'S NOT OFFICIAL, HE DOESN'T 699 00:27:18,470 --> 00:27:19,204 OFFICIALLY START AND GETTING 700 00:27:19,270 --> 00:27:20,572 PAID IN THE NEW POSITION UNTIL 701 00:27:20,638 --> 00:27:24,542 THE 25TH OF FEBRUARY, BUT ALL 702 00:27:24,609 --> 00:27:26,544 THE PAPERWORK IS DONE AND ALL 703 00:27:26,611 --> 00:27:30,749 THE APPROVAL IS OBTAINED AND DRE 704 00:27:30,815 --> 00:27:33,651 CHIEF OF THE DEPARTMENT OF 705 00:27:33,718 --> 00:27:35,453 TRANSFUSION MEDICINE AND THE 706 00:27:35,520 --> 00:27:36,721 CENTER FOR CELLULAR ENGINEERING. 707 00:27:36,788 --> 00:27:38,156 DAVID IS WELL-KNOWN TO US, HE'S 708 00:27:38,223 --> 00:27:39,557 BEEN HERE FOR A LONG TIME. 709 00:27:39,624 --> 00:27:40,992 HIS FORTE IS THE CELLULAR 710 00:27:41,059 --> 00:27:43,261 ENGINEERING DEPARTMENT, BUT 711 00:27:43,328 --> 00:27:44,696 DAVID KNOWS A LOT ABOUT 712 00:27:44,763 --> 00:27:47,632 TRANSFUSION MEDICINE AND I THINK 713 00:27:47,699 --> 00:27:51,803 THE DEPARTMENT IS IN GOOD HANDS 714 00:27:51,870 --> 00:27:53,338 AND DAVID IS VERY EXCITED TO GET 715 00:27:53,405 --> 00:27:55,206 STARTED BUT HE'S ALSO WILLING TO 716 00:27:55,273 --> 00:27:57,075 CONTINUE TO LEARN ABOUT WHAT 717 00:27:57,142 --> 00:27:59,644 BEING A DEPARTMENT CHIEF AND 718 00:27:59,711 --> 00:28:04,482 SENIOR LEADER IS. 719 00:28:04,549 --> 00:28:09,387 I THINK YOU HEARD FROM ANNE 720 00:28:09,454 --> 00:28:13,658 BERGER THE LAST TIME, ANNE RAN 721 00:28:13,725 --> 00:28:16,061 THE PAIN AND PALLIATIVE CARE 722 00:28:16,127 --> 00:28:20,331 SERVICE AND RETIRED. 723 00:28:20,398 --> 00:28:25,070 DR. JENNIFER CHENG HAS BEEN IN 724 00:28:25,136 --> 00:28:28,173 CHARGE OF THE FELLOWSHIP AND IS 725 00:28:28,239 --> 00:28:29,541 A DELIGHTFUL YOUNG PHYSICIAN. 726 00:28:29,607 --> 00:28:32,143 THIS DOESN'T LOOK LIKE A BIG 727 00:28:32,210 --> 00:28:33,478 DEAL BUT IT'S ACTUALLY A BIG 728 00:28:33,545 --> 00:28:34,312 DEAL. 729 00:28:34,379 --> 00:28:35,013 SO 2024 IS THE BLUE LINE. 730 00:28:35,080 --> 00:28:36,981 THIS IS THE FIRST TIME OUR BLUE 731 00:28:37,048 --> 00:28:39,384 LINE HAS BEEN ABOVE THAT YELLOW 732 00:28:39,451 --> 00:28:39,717 LINE. 733 00:28:39,784 --> 00:28:42,320 AND FOR FISCAL YEAR '24. 734 00:28:42,387 --> 00:28:43,955 AND PARTICULARLY THAT INFLECTION 735 00:28:44,022 --> 00:28:44,989 POINT WHERE IT LOOKS LIKE IT 736 00:28:45,056 --> 00:28:47,158 BEGINS TO GO UP A LITTLE MORE 737 00:28:47,225 --> 00:28:48,793 STEEPLY IS SOMETHING THAT WE'RE 738 00:28:48,860 --> 00:28:52,497 PAYING A LOT OF ATTENTION TO. 739 00:28:52,564 --> 00:28:54,666 SO OUR INPATIENT CENSUS IS 740 00:28:54,732 --> 00:28:57,535 ACTUALLY UP A LITTLE BIT. 741 00:28:57,602 --> 00:28:58,937 MAYBE NOT AS MUCH AS WE WANT 742 00:28:59,003 --> 00:29:03,675 YET, BUT I THINK WE SEE SOME 743 00:29:03,741 --> 00:29:07,712 INDICATION THAT ALL OF THE 744 00:29:07,779 --> 00:29:08,847 THINGS ASSOCIATED WITH COVID-19 745 00:29:08,913 --> 00:29:11,116 ARE KIND OF -- I HATE TO -- I'LL 746 00:29:11,182 --> 00:29:12,851 KNOCK ON WOOD AND SAY I DON'T 747 00:29:12,917 --> 00:29:15,587 THINK THAT IT'S ALL OVER YET, 748 00:29:15,653 --> 00:29:17,455 BUT IT LOOKS LIKE WE'RE DOING 749 00:29:17,522 --> 00:29:20,725 BETTER. 750 00:29:20,792 --> 00:29:22,260 THESE ARE THE NUMBERS. 751 00:29:22,327 --> 00:29:25,430 SO 9% INCREASE IN INPATIENT 752 00:29:25,497 --> 00:29:26,965 ADMISSIONS, OUR LENGTH OF STAY 753 00:29:27,031 --> 00:29:30,034 IS STILL DOWN, WHICH IS OKAY. 754 00:29:30,101 --> 00:29:32,637 THAT MEANS WE'RE GETTING THINGS 755 00:29:32,704 --> 00:29:36,141 DONE MORE EFFICIENTLY. 756 00:29:36,207 --> 00:29:38,309 INPATIENT DAYS NOT UP AS MUCH 757 00:29:38,376 --> 00:29:39,777 BECAUSE OF DECLINE IN AVERAGE 758 00:29:39,844 --> 00:29:41,412 LENGTH OF STAY, AND OUR AVERAGE 759 00:29:41,479 --> 00:29:43,815 CENSUS IS UP A LITTLE BIT. 760 00:29:43,882 --> 00:29:46,751 THE OUTPATIENT VISITS NOT QUITE 761 00:29:46,818 --> 00:29:51,022 SO MUCH. 762 00:29:51,089 --> 00:29:52,357 WE ALWAYS KEEP AN EYE ON THAT 763 00:29:52,423 --> 00:29:53,525 NEW PATIENT NUMBER AND WE'LL 764 00:29:53,591 --> 00:29:54,359 WATCH THAT DURING THE COURSE OF 765 00:29:54,425 --> 00:29:56,161 THE YEAR BUT IT'S DROPPED JUST A 766 00:29:56,227 --> 00:29:56,861 LITTLE BIT. 767 00:29:56,928 --> 00:29:59,097 IN COMPARISON -- AND IF WE WERE 768 00:29:59,164 --> 00:30:01,733 TO LOOK AT THIS SLIDE FROM 2023, 769 00:30:01,799 --> 00:30:05,336 YOU WOULD SEE THAT OUR 770 00:30:05,403 --> 00:30:06,771 OUTPATIENT VISITS MOVED UP ABOUT 771 00:30:06,838 --> 00:30:11,142 10 TO 15% IN 2023 OVER 2022. 772 00:30:11,209 --> 00:30:12,243 SO THE INCREASE IN THE 773 00:30:12,310 --> 00:30:13,678 OUTPATIENT VISITS LED THE 774 00:30:13,745 --> 00:30:14,946 INCREASE IN THE INPATIENT 775 00:30:15,013 --> 00:30:19,450 CENSUS. 776 00:30:19,517 --> 00:30:21,686 TEASE ARE OUR TELEHEALTH VISITS. 777 00:30:21,753 --> 00:30:22,720 AGAIN WE CONTINUE TO RELY ON 778 00:30:22,787 --> 00:30:24,822 THAT BASED ON SOME CONVERSATIONS 779 00:30:24,889 --> 00:30:26,424 I'VE HAD WITH DR. RATHMELL, WE 780 00:30:26,491 --> 00:30:27,759 MIGHT BE RELYING ON THAT EVEN A 781 00:30:27,825 --> 00:30:30,295 LITTLE MORE AS TIME GOES ALONG 782 00:30:30,361 --> 00:30:31,796 IN ORDER TO OPERATE A LITTLE 783 00:30:31,863 --> 00:30:34,332 MORE EFFICIENTLY. 784 00:30:34,399 --> 00:30:36,134 SO WE'LL BE WORKING ON THAT AS 785 00:30:36,201 --> 00:30:40,772 TIME GOES ALONG. 786 00:30:40,838 --> 00:30:44,042 DR. JORDAN DOESN'T HAVE A 787 00:30:44,108 --> 00:30:44,742 PRESENTATION THIS CLINICAL 788 00:30:44,809 --> 00:30:46,010 CENTER RESEARCH HOSPITAL BOARD 789 00:30:46,077 --> 00:30:47,045 MEETING BECAUSE THE CLINICAL 790 00:30:47,111 --> 00:30:50,048 CENTER NURSING DEPARTMENT IS 791 00:30:50,114 --> 00:30:53,218 BUSILY AND FEE FEARISHLY 792 00:30:53,284 --> 00:30:57,155 PREPARING THE -- FEVERISHLY 793 00:30:57,222 --> 00:31:00,425 PREPARING THE DOCUMENTS FOR OUR 794 00:31:00,491 --> 00:31:01,659 MAGNET SUBMISSION WHICH IS IN 795 00:31:01,726 --> 00:31:02,427 APRIL. 796 00:31:02,493 --> 00:31:03,928 SO YOU CAN SEE WHERE WE ARE ON 797 00:31:03,995 --> 00:31:04,762 THIS TIMELINE. 798 00:31:04,829 --> 00:31:09,400 WE'RE EXPECTING THE MAGNET VISIT 799 00:31:09,467 --> 00:31:10,235 LATER THIS SUMMER OR EARLY IN 800 00:31:10,301 --> 00:31:10,735 THE FALL. 801 00:31:10,802 --> 00:31:12,604 IF OUR LUCK HOLDS OUT, THE 802 00:31:12,670 --> 00:31:14,005 MAGNET FOLKS AND THE JOINT 803 00:31:14,072 --> 00:31:14,872 COMMISSION MIGHT AROUND AROUND 804 00:31:14,939 --> 00:31:15,640 THE SAME TIME. 805 00:31:15,707 --> 00:31:16,641 THAT WOULD BE KIND OF 806 00:31:16,708 --> 00:31:17,642 INTERESTING. 807 00:31:17,709 --> 00:31:21,446 BUT YOU KNOW, WE'RE THE NIH 808 00:31:21,512 --> 00:31:22,547 CLINICAL CENTER AND WE'RE UP FOR 809 00:31:22,614 --> 00:31:24,749 JUST ABOUT ANYTHING. 810 00:31:24,816 --> 00:31:26,851 AND SO I'VE SEEN SOME OF THE 811 00:31:26,918 --> 00:31:27,452 DOCUMENTS. 812 00:31:27,518 --> 00:31:29,120 THIS IS A VERY EXTENSIVE 813 00:31:29,187 --> 00:31:30,288 DOCUMENT SUBMISSION IN ORDER TO 814 00:31:30,355 --> 00:31:35,226 MEET ALL OF THE REQUIREMENTS FOR 815 00:31:35,293 --> 00:31:39,163 MAGNET, AND THE SEGMENTS I'VE 816 00:31:39,230 --> 00:31:40,498 SEEN THUS FAR HAVE BEEN WRITTEN 817 00:31:40,565 --> 00:31:43,434 IN REALLY, REALLY AMAZING WAY, 818 00:31:43,501 --> 00:31:47,171 AND I THINK WE'RE GOING TO GET 819 00:31:47,238 --> 00:31:48,239 ACROSS THE FINISH LINE. 820 00:31:48,306 --> 00:31:49,440 THIS HAS BEEN A VERY LONG 821 00:31:49,507 --> 00:31:49,774 JOURNEY. 822 00:31:49,841 --> 00:31:51,509 I THINK IT'S LONGER THAN IT WAS 823 00:31:51,576 --> 00:31:53,144 WHEN WE THOUGHT -- WHEN WE 824 00:31:53,211 --> 00:31:54,412 BEGAN, BUT IT'S VERY IMPORTANT 825 00:31:54,479 --> 00:31:59,417 TO OUR NURSING DEPARTMENT. 826 00:31:59,484 --> 00:32:04,022 AND I IT'S VERY IMPORTANT TO THE 827 00:32:04,088 --> 00:32:04,889 CLINICAL CENTER THAT WE'RE 828 00:32:04,956 --> 00:32:06,724 SUCCESSFUL IN THIS EFFORT. 829 00:32:06,791 --> 00:32:08,059 THE COURSE MAY HAVE SLOWED DOWN 830 00:32:08,126 --> 00:32:09,394 A LITTLE BIT DURING THE PANDEMIC 831 00:32:09,460 --> 00:32:10,995 BUT WE DID NOT REALLY DEVIATE 832 00:32:11,062 --> 00:32:13,398 FROM THIS GOAL DURING THE 833 00:32:13,464 --> 00:32:15,166 PANDEMIC, I THINK IS A CREDIT TO 834 00:32:15,233 --> 00:32:15,833 THE CLINICAL CENTER NURSING 835 00:32:15,900 --> 00:32:21,272 DEPARTMENT. 836 00:32:21,339 --> 00:32:24,208 WE HAVE A VERY ACTIVE -- 837 00:32:24,275 --> 00:32:26,511 DR. TABAK TALKED ABOUT THE 838 00:32:26,577 --> 00:32:27,145 DIVERSITY, EQUITY, INCLUSION AND 839 00:32:27,211 --> 00:32:28,313 ACCESSIBILITY, AND I WANT TO 840 00:32:28,379 --> 00:32:29,480 REMIND EVERYBODY THAT WHILE 841 00:32:29,547 --> 00:32:30,248 EVERYBODY ELSE SUBMITTED A PLAN 842 00:32:30,315 --> 00:32:31,949 THEY CALLED A RACIAL AND ETHNIC 843 00:32:32,016 --> 00:32:35,553 EQUITY PLAN, WE ALWAYS CALLED 844 00:32:35,620 --> 00:32:37,955 OUR PLAN A DEIA PLAN. 845 00:32:38,022 --> 00:32:39,791 WE INCLUDED ACCESSIBILITY BEFORE 846 00:32:39,857 --> 00:32:43,061 WE SUBMITTED THE PLAN. 847 00:32:43,127 --> 00:32:45,196 AND CC HENRY, WHO IS OUR 848 00:32:45,263 --> 00:32:46,297 SCIENTIFIC DIVERSITY ADVISER, IS 849 00:32:46,364 --> 00:32:47,832 VERY ACTIVE AND DOING A GREAT 850 00:32:47,899 --> 00:32:50,601 JOB OF CONNECTING US WITH THE 851 00:32:50,668 --> 00:32:55,073 NIH PROGRAMS, WITH THE NIH 852 00:32:55,139 --> 00:32:58,676 INSTITUTIONAL EFFORTS TO IMPROVE 853 00:32:58,743 --> 00:32:59,210 OUR DIVERSITY, EQUITY AND 854 00:32:59,277 --> 00:33:03,514 INCLUSION PROGRAMS, AND SERVES 855 00:33:03,581 --> 00:33:05,249 AS AN ADVISOR WITH DIRECT ACCESS 856 00:33:05,316 --> 00:33:08,186 TO ALL THE LEADERS IN THE 857 00:33:08,252 --> 00:33:09,721 CLINICAL CENTER, AND WE HAVE A 858 00:33:09,787 --> 00:33:15,960 NUMBER OF PROGRAMS AND I THINK 859 00:33:16,027 --> 00:33:17,061 WE'RE MAKING SOME PROGRESS. 860 00:33:17,128 --> 00:33:18,930 WE ACTUALLY WENT OVER OUR 861 00:33:18,996 --> 00:33:21,132 LATEST -- OUR SELF-GRADED RACIAL 862 00:33:21,199 --> 00:33:23,401 AND ETHNIC EQUITY PLAN PROCESS 863 00:33:23,468 --> 00:33:26,771 OR OUR DEIA PLAN PROCESS WITH 864 00:33:26,838 --> 00:33:30,074 THE OFFICE OF EQUITY, DIVERSITY, 865 00:33:30,141 --> 00:33:32,510 INCLUSION AND ACCESSIBILITY THIS 866 00:33:32,577 --> 00:33:33,378 WEEK, AND GENERALLY THEY WERE 867 00:33:33,444 --> 00:33:35,246 HAPPY WITH THE PROGRESS WE'VE 868 00:33:35,313 --> 00:33:36,514 MADE BUT WE HAVE LOTS MORE WORK 869 00:33:36,581 --> 00:33:39,917 TO DO. 870 00:33:39,984 --> 00:33:41,352 ONE OF THE PRIORITIES, I TALKED 871 00:33:41,419 --> 00:33:42,787 ABOUT THIS IN A PREVIOUS 872 00:33:42,854 --> 00:33:44,622 CLINICAL CENTER RESEARCH 873 00:33:44,689 --> 00:33:48,593 HOSPITAL BOARD MEETING, IS TO 874 00:33:48,659 --> 00:33:50,094 IMPROVE THE WAY WE COLLECT, 875 00:33:50,161 --> 00:33:50,728 STORE, HANDLE INFORMATION TO 876 00:33:50,795 --> 00:33:55,767 MAKE IT MORE USABLE. 877 00:33:55,833 --> 00:33:57,001 EASIER TO FIND WHAT YOU WANT, 878 00:33:57,068 --> 00:33:58,636 BOTH FOR THE STAFF AND PATIENTS. 879 00:33:58,703 --> 00:34:05,843 AND WE HAD TO GO BACK AND START 880 00:34:05,910 --> 00:34:07,178 AT THE GROUND LEVEL AND 881 00:34:07,245 --> 00:34:08,913 BASICALLY REDESIGN OUR WEBSITE. 882 00:34:08,980 --> 00:34:11,749 AND THAT IS UNDERWAY NOW. 883 00:34:11,816 --> 00:34:13,151 THE NEXT COUPLE OF SLIDES SORT 884 00:34:13,217 --> 00:34:15,787 OF DESCRIBE WHERE WE ARE WITH 885 00:34:15,853 --> 00:34:17,855 THAT. 886 00:34:17,922 --> 00:34:18,990 IT'S PRETTY CLEAR FROM THE 887 00:34:19,056 --> 00:34:20,591 NUMBER OF HIT THAT WE HAVE ON 888 00:34:20,658 --> 00:34:21,926 THE WEBPAGE THAT PEOPLE ARE 889 00:34:21,993 --> 00:34:22,560 GOING THERE TO LOOK. 890 00:34:22,627 --> 00:34:24,662 WE'RE NOT SURE THEY'RE ABLE 891 00:34:24,729 --> 00:34:25,863 TO -- WE CAN'T TELL WHETHER THEY 892 00:34:25,930 --> 00:34:26,798 CAN FIND WHAT THEY'RE LOOKING 893 00:34:26,864 --> 00:34:27,398 FOR OR NOT. 894 00:34:27,465 --> 00:34:28,800 SO WE HAVE TO MAKE SURE THAT 895 00:34:28,866 --> 00:34:30,868 IT'S MORE INTUITIVE AND THAT THE 896 00:34:30,935 --> 00:34:33,171 SEARCH FUNCTION IS APPROVED, AND 897 00:34:33,237 --> 00:34:37,041 THAT THE INFORMATION IS KEPT UP 898 00:34:37,108 --> 00:34:37,675 TO DATE. 899 00:34:37,742 --> 00:34:41,279 AND THIS IS KIND OF WHERE WE ARE 900 00:34:41,345 --> 00:34:42,914 IN THE PROCESS AND THERE'S 901 00:34:42,980 --> 00:34:44,449 OBVIOUSLY SOME OUTSIDE HELP 902 00:34:44,515 --> 00:34:45,316 ASSOCIATED WITH THIS. 903 00:34:45,383 --> 00:34:48,386 WE TOOK A LITTLE BIT OF OUR 904 00:34:48,453 --> 00:34:50,154 HIGHER LAG MONEY FROM FY 23 AND 905 00:34:50,221 --> 00:34:51,489 FUNDED THIS CONTRACT AND WE'RE 906 00:34:51,556 --> 00:34:53,291 LOOKING FORWARD TO SEEING SOME 907 00:34:53,357 --> 00:34:55,393 OF THE RESULTS OF THAT AS TIME 908 00:34:55,460 --> 00:34:59,330 GOES ALONG, AND RIGHT NOW WE'RE 909 00:34:59,397 --> 00:35:02,366 WORKING WITH BTRIS, OUR BIG 910 00:35:02,433 --> 00:35:07,438 RESEARCH DATA REPOSITORY THAT 911 00:35:07,505 --> 00:35:09,640 EXISTS -- IT CONNECTS WITH OUR 912 00:35:09,707 --> 00:35:12,877 ELECTRONIC HEALTH RECORD, BUT IT 913 00:35:12,944 --> 00:35:17,482 IS NOT -- YOU ACCESS THE DATA 914 00:35:17,548 --> 00:35:19,116 SEPARATELY FROM ACCESSING THE 915 00:35:19,183 --> 00:35:21,419 ELECTRONIC HEALTH RECORD, OR 916 00:35:21,486 --> 00:35:22,620 ELSE OUR ELECTRONIC HEALTH 917 00:35:22,687 --> 00:35:23,721 RECORD WOULD BECOME REALLY, 918 00:35:23,788 --> 00:35:26,257 REALLY SLOW. 919 00:35:26,324 --> 00:35:29,494 AND SO BEING ABLE TO GET FROM 920 00:35:29,560 --> 00:35:32,463 OUR WEBSITE IN TO THE BTRIS 921 00:35:32,530 --> 00:35:33,564 DATABASE AND MAP TO THE 922 00:35:33,631 --> 00:35:34,665 INFORMATION THAT YOU'RE LOOKING 923 00:35:34,732 --> 00:35:36,734 FOR IS ONE OF THE THINGS THEY'RE 924 00:35:36,801 --> 00:35:45,243 WORKING ON RIGHT NOW. 925 00:35:45,309 --> 00:35:46,777 DAVID'S QUESTION IS, IS JUSTIN 926 00:35:46,844 --> 00:35:48,112 COHEN THE CHIEF OF THE OFFICE OF 927 00:35:48,179 --> 00:35:50,081 COMMUNICATIONS AND MEDIA 928 00:35:50,147 --> 00:35:51,482 RELATIONS, THE PERSON WHO'S -- 929 00:35:51,549 --> 00:35:52,917 THEY'RE THE ONES WHO ARE 930 00:35:52,984 --> 00:35:57,221 DIRECTING THE WEBSITE CHANGE. 931 00:35:57,288 --> 00:35:58,589 WELL, WE DON'T HAVE ANY 932 00:35:58,656 --> 00:36:00,658 WATERFRONT PROPERTY ANYMORE AT 933 00:36:00,725 --> 00:36:02,293 THE SURGERY, RADIOLOGY AND 934 00:36:02,360 --> 00:36:03,160 LABORATORY MEDICINE WING. 935 00:36:03,227 --> 00:36:04,829 WE DID HAVE A LITTLE SNOW A FEW 936 00:36:04,896 --> 00:36:05,930 WEEKS AGO AND I WENT OVER AND 937 00:36:05,997 --> 00:36:09,734 TOOK THIS PICTURE AND SO KIND OF 938 00:36:09,800 --> 00:36:11,936 WONDERED AFTER WE LOOKED AT IT 939 00:36:12,003 --> 00:36:13,905 ABOUT, YOU KNOW, ABOUT MAYBE A 940 00:36:13,971 --> 00:36:15,973 SKI RESORT, BUT WE'RE 941 00:36:16,040 --> 00:36:17,208 PROBABLY -- THE SNOW MELTED 942 00:36:17,275 --> 00:36:20,878 PRETTY FAST AND WE'RE BACK TO 943 00:36:20,945 --> 00:36:21,212 CONSTRUCTION. 944 00:36:21,279 --> 00:36:22,780 WE'RE SORT OF -- WE'VE GOTTEN 945 00:36:22,847 --> 00:36:24,749 THROUGH SOME OF THE INITIAL 946 00:36:24,815 --> 00:36:30,187 STEPS AND I THINK THERE WAS A 947 00:36:30,254 --> 00:36:35,326 DELAY, THEY FOUND SOME ASBESTOS 948 00:36:35,393 --> 00:36:36,761 IN A CONDUIT THAT WAS ABOUT 949 00:36:36,827 --> 00:36:41,465 WHERE YOU SEE THAT CRANE SITTING 950 00:36:41,532 --> 00:36:43,434 NOW, AND IT SLOWED THINGS DOWN A 951 00:36:43,501 --> 00:36:44,869 LITTLE BIT AS THEY HAD TO DO ALL 952 00:36:44,936 --> 00:36:46,270 THE MITIGATION AND TESTING AND 953 00:36:46,337 --> 00:36:47,705 EVERYTHING ASSOCIATED WITH THAT. 954 00:36:47,772 --> 00:36:50,641 BUT I THINK THEY'RE PRETTY -- 955 00:36:50,708 --> 00:36:51,375 ACTUALLY PRETTY CLOSE TO 956 00:36:51,442 --> 00:36:55,279 SCHEDULE NOW. 957 00:36:55,346 --> 00:36:57,748 THE FEDERAL EMPLOYEE VIEWPOINT 958 00:36:57,815 --> 00:36:59,850 SURVEY IS THE FEDERAL 959 00:36:59,917 --> 00:37:01,485 GOVERNMENT'S ANNUAL ASSESSMENT 960 00:37:01,552 --> 00:37:04,155 OF THE WORKFORCE. 961 00:37:04,221 --> 00:37:05,423 IT'S QUITE A BIG DEAL. 962 00:37:05,489 --> 00:37:07,058 IT'S BECOME A BIGGER DEAL AS 963 00:37:07,124 --> 00:37:10,561 TIME HAS GONE ALONG. 964 00:37:10,628 --> 00:37:13,164 AND I THINK I WENT OVER THE 965 00:37:13,230 --> 00:37:14,966 RESULTS OF LAST YEAR'S SURVEY IN 966 00:37:15,032 --> 00:37:15,866 THE CLINICAL CENTER RESEARCH 967 00:37:15,933 --> 00:37:16,701 HOSPITAL BOARD SO I'M GOING TO 968 00:37:16,767 --> 00:37:17,902 SHOW YOU A FEW SLIDES ABOUT HOW 969 00:37:17,969 --> 00:37:18,869 WE DID THIS YEAR. 970 00:37:18,936 --> 00:37:21,205 SO AGAIN, FOR ANYBODY THAT'S NOT 971 00:37:21,272 --> 00:37:23,474 AWARE, IT'S AN ANNUAL EMPLOYEE 972 00:37:23,541 --> 00:37:26,844 SURVEY FROM OPM, AND IT MEASURES 973 00:37:26,911 --> 00:37:29,380 OUR STAFF MEMBERS' PERCEPTIONS 974 00:37:29,447 --> 00:37:30,815 ABOUT WORK EXPERIENCES, 975 00:37:30,881 --> 00:37:35,319 ORGANIZATIONS AND LEADERS. 976 00:37:35,386 --> 00:37:38,889 AND CONTRACTORS DON'T GET A 977 00:37:38,956 --> 00:37:39,991 CHANCE TO TAKE IT AND YOU HAVE 978 00:37:40,057 --> 00:37:43,394 TO BE HERE A LITTLE WHILE BEFORE 979 00:37:43,461 --> 00:37:44,996 YOU'RE INCLUDED IN THE SURVEY. 980 00:37:45,062 --> 00:37:49,500 AND LAST YEAR, YOU CAN SEE THE 981 00:37:49,567 --> 00:37:56,073 TIME THE SURVEY WAS AVAILABLE. 982 00:37:56,140 --> 00:37:57,375 THEY CHANGE IT JUST A LITTLE 983 00:37:57,441 --> 00:37:59,076 BIT, MOST OF IT'S THE SAME BUT 984 00:37:59,143 --> 00:38:00,211 THEY CHANGED IT JUST A LITTLE 985 00:38:00,277 --> 00:38:01,078 BIT THIS YEAR. 986 00:38:01,145 --> 00:38:03,047 AND THIS IS OUR PARTICIPATION 987 00:38:03,114 --> 00:38:03,247 RATE. 988 00:38:03,314 --> 00:38:04,515 AND FRANKLY, THE PARTICIPATION 989 00:38:04,582 --> 00:38:05,683 RATE IS ONE OF THE MOST 990 00:38:05,750 --> 00:38:08,786 IMPORTANT METRICS THAT I LOOK AT 991 00:38:08,853 --> 00:38:11,055 IN ORDER TO TRY TO MAKE SURE 992 00:38:11,122 --> 00:38:13,758 THAT WE'RE GETTING USEFUL 993 00:38:13,824 --> 00:38:17,628 INFORMATION FROM THE SURVEY. 994 00:38:17,695 --> 00:38:19,463 WE ACTUALLY BROKE THE RECORD, WE 995 00:38:19,530 --> 00:38:21,866 ACTUALLY WERE AT 65.4%, WHEREAS 996 00:38:21,932 --> 00:38:25,469 THE PAST RECORD WAS 65%. 997 00:38:25,536 --> 00:38:28,139 BY THE WAY, MY ARRIVAL WAS IN 998 00:38:28,205 --> 00:38:35,212 2017, SO THAT 2016 TO 2017 WHERE 999 00:38:35,279 --> 00:38:36,981 THE SLOPE OF THE LINE IS A 1000 00:38:37,048 --> 00:38:40,685 LITTLE STEEPER IS WHEN THINGS 1001 00:38:40,751 --> 00:38:41,919 SORT OF CHANGED AT THE CLINICAL 1002 00:38:41,986 --> 00:38:46,257 CENTER AFTER THE FDA VISIT AND 1003 00:38:46,323 --> 00:38:48,759 THE RED TEAM REPORT. 1004 00:38:48,826 --> 00:38:52,730 SO THIS IS OUR RESPONSE RATE. 1005 00:38:52,797 --> 00:38:57,668 WE WERE AT 65.4%, BUT NOT ENOUGH 1006 00:38:57,735 --> 00:39:01,272 OF A CHANGE TO REGISTER. 1007 00:39:01,338 --> 00:39:02,973 THIS SLIDE ACTUALLY COMES FROM 1008 00:39:03,040 --> 00:39:08,145 NIH OFFICE OF HUMAN RESOURCES. 1009 00:39:08,212 --> 00:39:11,215 THESE ARE THE OPM AND 1010 00:39:11,282 --> 00:39:12,249 HHS-MEASURED INDICES THAT WE 1011 00:39:12,316 --> 00:39:14,018 LOOKED AT. 1012 00:39:14,085 --> 00:39:15,686 THIS IS PRETTY FAMILIAR, THIS IS 1013 00:39:15,753 --> 00:39:16,587 PRETTY CONSISTENT WITH WHAT WE 1014 00:39:16,654 --> 00:39:17,988 DO EVERY YEAR. 1015 00:39:18,055 --> 00:39:19,724 WE'RE NEVER QUITE AS GOOD AS THE 1016 00:39:19,790 --> 00:39:22,326 NIH AT LARGE, BUT YOU CAN SEE 1017 00:39:22,393 --> 00:39:24,662 THE DIFFERENCE WITH 2022, 1018 00:39:24,729 --> 00:39:26,530 THERE'S BASICALLY NO DIFFERENCE. 1019 00:39:26,597 --> 00:39:27,932 SOME THINGS GO UP BY A 1020 00:39:27,998 --> 00:39:29,567 PERCENTAGE, SOME THINGS GO DOWN 1021 00:39:29,633 --> 00:39:30,234 BY A PERCENTAGE. 1022 00:39:30,301 --> 00:39:32,002 SOME OF THE THINGS DON'T CHANGE. 1023 00:39:32,069 --> 00:39:41,846 SO THIS IS SORT OF A NEUTRAL 1024 00:39:41,912 --> 00:39:42,480 FEVS THIS YEAR. 1025 00:39:42,546 --> 00:39:44,148 NOT SURE HOW WE'RE GOING TO GET 1026 00:39:44,215 --> 00:39:44,882 THINGS MOVING AGAIN. 1027 00:39:44,949 --> 00:39:46,050 YOU'LL SEE SOME MORE INFORMATION 1028 00:39:46,117 --> 00:39:46,283 HERE. 1029 00:39:46,350 --> 00:39:49,587 SO THESE ARE SOME OF THE OTHER 1030 00:39:49,653 --> 00:39:51,055 INDICES THAT ARE MEASURED. 1031 00:39:51,122 --> 00:39:53,424 YOU CAN SEE THAT A COUPLE OF 1032 00:39:53,491 --> 00:39:54,492 THEM DIDN'T CHANGE, A COUPLE OF 1033 00:39:54,558 --> 00:39:55,926 THEM WENT UP BY A COUPLE 1034 00:39:55,993 --> 00:39:58,462 PERCENTAGE POINTS, AND THE 1035 00:39:58,529 --> 00:40:02,600 ACCESSIBILITY WENT DOWN BY 1036 00:40:02,666 --> 00:40:03,033 1 PERCENTAGE POINT. 1037 00:40:03,100 --> 00:40:04,702 BELIEF IN ACTION INDICATOR, 1038 00:40:04,769 --> 00:40:07,071 REMEMBER, THERE'S NO -- THESE 1039 00:40:07,138 --> 00:40:11,475 ARE EXPANDED SCALE SO DIFFER 1040 00:40:11,542 --> 00:40:12,243 DIFFERENCES LOOK BIGGER THAN 1041 00:40:12,309 --> 00:40:14,211 THEY REALLY ARE, SO OUR BELIEF 1042 00:40:14,278 --> 00:40:17,948 IN ACTION INDICATOR IS PRETTY 1043 00:40:18,015 --> 00:40:21,185 STABLE OVER THE COURSE OF THE 1044 00:40:21,252 --> 00:40:21,652 PANDEMIC. 1045 00:40:21,719 --> 00:40:23,721 THE EMPLOYMENT ENGAGEMENT INDEX 1046 00:40:23,788 --> 00:40:26,557 LOOKS LIKE IT WENT DOWN A LOT 1047 00:40:26,624 --> 00:40:29,193 BETWEEN 2020 TO 2022, BUT THAT'S 1048 00:40:29,260 --> 00:40:30,928 REALLY 2 PERCENTAGE POINTS. 1049 00:40:30,995 --> 00:40:33,230 THE GLOBAL SATISFACTION INDEX 1050 00:40:33,297 --> 00:40:36,400 WENT DOWN FROM 2000 TO 2022. 1051 00:40:36,467 --> 00:40:41,038 MUCH OF THIS -- ONE OF THE BIG 1052 00:40:41,105 --> 00:40:44,275 CONTRIBUTORS IS THAT MORE OF THE 1053 00:40:44,341 --> 00:40:45,709 STAFF IN THE CLINICAL CENTER 1054 00:40:45,776 --> 00:40:49,547 THIS YEAR FEEL LIKE THEIR 1055 00:40:49,613 --> 00:40:50,548 COMPENSATION ISN'T AS HIGH AS IT 1056 00:40:50,614 --> 00:40:51,182 SHOULD BE. 1057 00:40:51,248 --> 00:40:56,487 WE DID HAVE A DROPOFF THERE. 1058 00:40:56,554 --> 00:40:58,522 PERFORMANCE CONFIDENCE, IT LOOKS 1059 00:40:58,589 --> 00:40:59,056 PRETTY GOOD. 1060 00:40:59,123 --> 00:41:04,995 WE HAD NO CHANGE IN OUR DEIA 1061 00:41:05,062 --> 00:41:05,462 INDEX. 1062 00:41:05,529 --> 00:41:06,430 WE WOULD REALLY LIKE TO SEE THAT 1063 00:41:06,497 --> 00:41:07,298 MOVE UP A LITTLE BIT. 1064 00:41:07,364 --> 00:41:08,966 SO HERE ARE THE QUICK STATS. 1065 00:41:09,033 --> 00:41:15,506 THE WAY THIS IS LOOKED AT BY O 1066 00:41:15,573 --> 00:41:16,273 OPM. 1067 00:41:16,340 --> 00:41:18,375 75 OUT OF 89 INDICATORS WERE 1068 00:41:18,442 --> 00:41:19,243 CONSIDERED STRENGTHS, AND THAT'S 1069 00:41:19,310 --> 00:41:22,613 ABOUT THE SAME AS IT WAS IN 1070 00:41:22,680 --> 00:41:23,614 2022. 1071 00:41:23,681 --> 00:41:26,450 WE DID NOT HAVE A LESS THAN 40% 1072 00:41:26,517 --> 00:41:28,953 POSITIVE RATING. 1073 00:41:29,019 --> 00:41:31,255 I THINK THAT ADEQUACY OF 1074 00:41:31,322 --> 00:41:32,690 COMPENSATION WAS PROBABLY 48%. 1075 00:41:32,756 --> 00:41:33,991 THAT'S ABOUT AS LOW AS IT GETS. 1076 00:41:34,058 --> 00:41:36,527 AND WE HAD ONE CHALLENGE AREA 1077 00:41:36,594 --> 00:41:38,495 LAST YEAR BUT NONE THIS YEAR. 1078 00:41:38,562 --> 00:41:42,233 FOR TOES THOSE OF YOU THAT KNOT 1079 00:41:42,299 --> 00:41:43,734 ABOUT THESE SURVEYS, IT'S THE 1080 00:41:43,801 --> 00:41:44,735 NEUTRAL RATINGS THAT ARE 1081 00:41:44,802 --> 00:41:45,803 IDENTIFIED AS OPPORTUNITIES, YOU 1082 00:41:45,870 --> 00:41:46,670 CAN MOVE THEM ONE WAY OR THE 1083 00:41:46,737 --> 00:41:47,338 OTHER. 1084 00:41:47,404 --> 00:41:49,773 IF YOU HAVE MORE THAN 30% OF 1085 00:41:49,840 --> 00:41:52,142 YOUR STAFF THAT ARE SOMEPLACE IN 1086 00:41:52,209 --> 00:41:53,344 THE MIDDLE THERE, THEN THAT'S 1087 00:41:53,410 --> 00:41:55,546 CONSIDERED AN OPPORTUNITY. 1088 00:41:55,613 --> 00:41:58,515 WE HAD NONE THERE, SO IT SAYS 1089 00:41:58,582 --> 00:42:00,784 OUR OPPORTUNITIES MIGHT BE 1090 00:42:00,851 --> 00:42:01,252 LIMITED. 1091 00:42:01,318 --> 00:42:04,521 WE HAD NO OPPORTUNITIES -- WE 1092 00:42:04,588 --> 00:42:07,358 HAD NO EFFORTS/INDICATIONS THAT 1093 00:42:07,424 --> 00:42:08,993 THINGS IMPROVED OR DECLINED. 1094 00:42:09,059 --> 00:42:12,830 THESE ARE THE TOP FIVE 1095 00:42:12,897 --> 00:42:14,465 STRENGTHS, AND I THINK THESE ARE 1096 00:42:14,531 --> 00:42:17,234 ALL GOOD THINGS ON THE PART OF 1097 00:42:17,301 --> 00:42:19,203 THE CLINICAL CENTER STAFF. 1098 00:42:19,270 --> 00:42:20,604 THESE ARE THE OPPORTUNITIES 1099 00:42:20,671 --> 00:42:23,574 AGAIN, WE HAD NONE THAT MET THE 1100 00:42:23,641 --> 00:42:26,010 OFFICIAL DEFINITION, BUT YOU CAN 1101 00:42:26,076 --> 00:42:28,946 SEE THE ONES WHERE WE HAVE THE 1102 00:42:29,013 --> 00:42:31,548 GREATEST OPPORTUNITY TO IMPROVE, 1103 00:42:31,615 --> 00:42:34,184 AND MAYBE BE ABLE TO MAKE A 1104 00:42:34,251 --> 00:42:38,088 DIFFERENCE. 1105 00:42:38,155 --> 00:42:39,990 WE HAD NO CHALLENGE AREAS BUT 1106 00:42:40,057 --> 00:42:42,059 THIS IS -- WHICH IS LESS THAN 1107 00:42:42,126 --> 00:42:43,260 40%, BUT HOW SATISFIED ARE YOU 1108 00:42:43,327 --> 00:42:46,997 WITH YOUR PAY AT 48.5% WAS 1109 00:42:47,064 --> 00:42:48,399 ACTUALLY THE ONLY ITEM BELOW 1110 00:42:48,465 --> 00:42:52,136 50%. 1111 00:42:52,202 --> 00:42:53,871 WE HAD A NUMBER OF AREAS THAT 1112 00:42:53,938 --> 00:42:55,005 DECLINED. 1113 00:42:55,072 --> 00:42:57,374 ALL DECLINED IN A RELATIVELY 1114 00:42:57,441 --> 00:43:00,678 SMALL WAY. 1115 00:43:00,744 --> 00:43:06,884 AND I THINK THAT'S PROBABLY IT 1116 00:43:06,951 --> 00:43:08,319 FOR THE FEVS SURVEY. 1117 00:43:08,385 --> 00:43:09,620 WE DO EXPECT THE JOINT 1118 00:43:09,687 --> 00:43:15,826 COMMISSION LATER ON THIS YEAR, 1119 00:43:15,893 --> 00:43:19,296 AND DR. LANGE AND HIS STAFF HAVE 1120 00:43:19,363 --> 00:43:21,999 PREPARED THE JOINT COMMISSION 1121 00:43:22,066 --> 00:43:24,201 READINESS GUIDE, THAT'S 1122 00:43:24,268 --> 00:43:25,636 AVAILABLE. 1123 00:43:25,703 --> 00:43:27,237 WE WILL HAVE SOME OTHER JOINT 1124 00:43:27,304 --> 00:43:28,906 COMMISSION RELATED EVENTS COMING 1125 00:43:28,973 --> 00:43:29,206 UP. 1126 00:43:29,273 --> 00:43:33,377 WE'RE ACTUALLY ON OUR -- FROM MY 1127 00:43:33,444 --> 00:43:37,314 EMAIL ACCOUNT, THE CEO'S EMAIL 1128 00:43:37,381 --> 00:43:39,616 ACCOUNT, WE'VE GONE THROUGH A 1129 00:43:39,683 --> 00:43:48,592 SERIES OF REVIEW OF THE TENETS 1130 00:43:48,659 --> 00:43:50,027 OF HIGH RELIABILITY IN THE 1131 00:43:50,094 --> 00:43:53,630 DELIVERY OF HEALTHCARE THAT 1132 00:43:53,697 --> 00:43:56,133 ARE -- THAT OUR SURVEY OF 1133 00:43:56,200 --> 00:43:56,700 PATIENT SAFETY INDICATED IT 1134 00:43:56,767 --> 00:43:58,002 MIGHT BE TIME TO REVIEW THOSE, 1135 00:43:58,068 --> 00:43:59,203 SO WE'VE BEEN DOING THAT OVER 1136 00:43:59,269 --> 00:44:00,771 THE COURSE OF THE LAST WEEK. 1137 00:44:00,838 --> 00:44:03,374 WE HAVE DONE -- WE DID COMPLETE 1138 00:44:03,440 --> 00:44:04,375 THE SURVEY OF PATIENT SAFETY. 1139 00:44:04,441 --> 00:44:08,645 I WILL SAY THAT THE RESPONSE 1140 00:44:08,712 --> 00:44:10,481 THIS YEAR, THERE WERE LESS THAN 1141 00:44:10,547 --> 00:44:12,049 600 OUT OF 5,000 PEOPLE WHO GOT 1142 00:44:12,116 --> 00:44:13,150 THE SURVEY WHO ACTUALLY 1143 00:44:13,217 --> 00:44:14,451 COMPLETED IT. 1144 00:44:14,518 --> 00:44:15,419 I DO BELIEVE THAT THERE'S A 1145 00:44:15,486 --> 00:44:17,421 LITTLE BIT OF SURVEY FATIGUE 1146 00:44:17,488 --> 00:44:20,824 AROUND THE NIH RIGHT NOW, AND I 1147 00:44:20,891 --> 00:44:23,127 WAS A LITTLE DISAPPOINTED THAT 1148 00:44:23,193 --> 00:44:24,762 WE COULDN'T GET -- BECAUSE WE'VE 1149 00:44:24,828 --> 00:44:26,397 DONE -- WE DID THE SURVEY IN 1150 00:44:26,463 --> 00:44:31,969 2017, WE DID IT IN 2020. 1151 00:44:32,036 --> 00:44:33,370 FOLLOWING OVERTIME IS REALLY 1152 00:44:33,437 --> 00:44:34,071 KIND OF IMPORTANT. 1153 00:44:34,138 --> 00:44:37,141 WE MADE SIGNIFICANT IMPROVEMENTS 1154 00:44:37,207 --> 00:44:38,675 BETWEEN 2017 AND 2020, BUT WHAT 1155 00:44:38,742 --> 00:44:42,513 YOU WILL SEE IS THAT WE ARE -- 1156 00:44:42,579 --> 00:44:47,851 WE BASICALLY TRACK ALONG WITH 1157 00:44:47,918 --> 00:44:51,789 AGE THE AHRQ APPEARS THAT ALSO 1158 00:44:51,855 --> 00:44:52,823 PARTICIPATE IN THIS SURVEY. 1159 00:44:52,890 --> 00:44:54,191 THE SURVEY IS SENT TO EVERYBODY 1160 00:44:54,258 --> 00:44:55,893 THAT WORKS IN BUILDING 10, NOT 1161 00:44:55,959 --> 00:44:57,928 JUST THOSE WHO BELONG TO THE 1162 00:44:57,995 --> 00:45:02,800 CLINICAL CENTER, AND SO YOU CAN 1163 00:45:02,866 --> 00:45:06,637 SEE THAT, AGAIN, WE LOOK A LOT 1164 00:45:06,703 --> 00:45:07,738 LIKE AHRQ. 1165 00:45:07,805 --> 00:45:08,872 SO IF YOU LOOK AT THE BLUE AND 1166 00:45:08,939 --> 00:45:11,241 THE ORANGE AND YOU LOOK AT THE 1167 00:45:11,308 --> 00:45:13,243 AHRQ ON THE RIGHT AND OURS ON 1168 00:45:13,310 --> 00:45:16,413 THE LEFT, YOU CAN SEE THAT IN 1169 00:45:16,480 --> 00:45:18,282 AHRQ, THAT THERE WERE A FEW MORE 1170 00:45:18,348 --> 00:45:21,985 EXCELLENTS AND NOT AS MANY VERY 1171 00:45:22,052 --> 00:45:22,419 GOODS. 1172 00:45:22,486 --> 00:45:25,189 SO THAT'S REALLY ABOUT THE ONLY 1173 00:45:25,255 --> 00:45:26,190 DIFFERENCE HERE. 1174 00:45:26,256 --> 00:45:27,791 AND THEN IF YOU LOOK AT THE 1175 00:45:27,858 --> 00:45:29,493 NUMERICAL SCORES IN THE 10 1176 00:45:29,560 --> 00:45:31,762 DIFFERENT DOMAINS, YOU CAN SEE 1177 00:45:31,829 --> 00:45:35,365 THAT THERE ARE A COUPLE OF 1178 00:45:35,432 --> 00:45:39,002 PLACES WHERE WE DO A LITTLE LESS 1179 00:45:39,069 --> 00:45:41,472 WELL THAN THE AHRQ FOLKS. 1180 00:45:41,538 --> 00:45:45,209 DOWN AT THE BOTTOM, THE HANDOFFS 1181 00:45:45,275 --> 00:45:46,076 AND INFORMATION CHANGE IS ONE OF 1182 00:45:46,143 --> 00:45:47,077 THOSE AREAS. 1183 00:45:47,144 --> 00:45:48,312 AND THEN YOU LOOK, YOU CAN SEE A 1184 00:45:48,378 --> 00:45:50,914 COUPLE OF AREAS WHERE WE DO A 1185 00:45:50,981 --> 00:45:51,915 LITTLE BIT BETTER. 1186 00:45:51,982 --> 00:45:53,484 WE DO BETTER FOR STAFFING AND 1187 00:45:53,550 --> 00:45:54,785 WORKPLACE ENVIRONMENT, AND WE DO 1188 00:45:54,852 --> 00:45:56,620 A LITTLE BETTER ON SUPERVISOR, 1189 00:45:56,687 --> 00:45:58,055 MANAGER OR CLINICAL LEADER 1190 00:45:58,122 --> 00:46:01,125 SHOULD PORT FOR PATIENT SAFETY. 1191 00:46:01,191 --> 00:46:02,126 SUPPORT FOR PATIENT SAFETY THAN 1192 00:46:02,192 --> 00:46:04,328 THE AHRQ NUMBERS. 1193 00:46:04,394 --> 00:46:06,497 EVERYTHING ELSE IS AWFULLY CLOSE 1194 00:46:06,563 --> 00:46:08,365 TO THE STATE YOUR NAME. 1195 00:46:08,432 --> 00:46:08,565 SAME. 1196 00:46:08,632 --> 00:46:11,869 SO WE HAVE -- WE'RE NOT 1197 00:46:11,935 --> 00:46:14,471 SATISFIED WITH LOOKING A LOT 1198 00:46:14,538 --> 00:46:19,109 LIKE THE REST OF AHRQ, IN PART 1199 00:46:19,176 --> 00:46:24,148 BECAUSE OUR RESEARCH PATIENT 1200 00:46:24,214 --> 00:46:26,116 POPULATION, WE CAN PLAN 1201 00:46:26,183 --> 00:46:27,885 EVERYTHING. 1202 00:46:27,951 --> 00:46:29,086 WE'RE NOT SUBJECT TO PEOPLE 1203 00:46:29,153 --> 00:46:32,389 COMING IN THROUGH OUR EMERGENCY 1204 00:46:32,456 --> 00:46:33,824 ROOM THAT WE HAVE NO IDEA WHAT'S 1205 00:46:33,891 --> 00:46:34,725 THE MATTER WITH. 1206 00:46:34,791 --> 00:46:36,627 WE KNOW WHAT'S THE MATTER WITH 1207 00:46:36,693 --> 00:46:37,394 THEM BEFORE THEY CAME. 1208 00:46:37,461 --> 00:46:40,597 WE SHOULD BE ABLE TO BE THE 1209 00:46:40,664 --> 00:46:42,699 AHRQ -- BEAT THE AHRQ NUMBERS 1210 00:46:42,766 --> 00:46:46,537 AND WE'LL KEEP PUSHING ON THAT. 1211 00:46:46,603 --> 00:46:49,806 WE SPEND A LOT OF TIME ON STAFF 1212 00:46:49,873 --> 00:46:54,845 WELLNESS, AND WE HAD A VERY 1213 00:46:54,912 --> 00:46:56,647 SPECIAL TOWN HALL MEETING BY OUR 1214 00:46:56,713 --> 00:47:00,617 CLINICAL CENTER WELLNESS GROUP, 1215 00:47:00,684 --> 00:47:02,619 MANAGING DEPRESSION, ANXIETY AND 1216 00:47:02,686 --> 00:47:03,287 SUICIDE PREVENTION. 1217 00:47:03,353 --> 00:47:05,155 MOST OF THESE POINT HERE ARE 1218 00:47:05,222 --> 00:47:08,959 WELL-KNOWN TO ALL OF YOU, AND TO 1219 00:47:09,026 --> 00:47:10,294 REMIND EVERYONE ABOUT THE 1220 00:47:10,360 --> 00:47:14,665 RESOURCES THAT ARE AVAILABLE AND 1221 00:47:14,731 --> 00:47:19,703 THIS WAS -- THIS WAS A VERY -- I 1222 00:47:19,770 --> 00:47:21,338 WAS A LITTLE SURPRISED, I WAS 1223 00:47:21,405 --> 00:47:23,440 VERY SUPPORTIVE OF THIS EVENT, 1224 00:47:23,507 --> 00:47:24,741 BUT PEOPLE WHO USUALLY DON'T 1225 00:47:24,808 --> 00:47:27,277 TALK TO ME IN THE HALLWAY OF THE 1226 00:47:27,344 --> 00:47:28,579 CLINICAL CENTER CAME UP TO ME 1227 00:47:28,645 --> 00:47:31,014 AND STOPPED ME IN THE HALLWAY 1228 00:47:31,081 --> 00:47:33,750 AND TOLD ME THAT THEY WERE -- 1229 00:47:33,817 --> 00:47:34,918 THAT THEY'D NEVER BEEN IN AN 1230 00:47:34,985 --> 00:47:35,919 ORGANIZATION WHERE THEY WOULD 1231 00:47:35,986 --> 00:47:39,656 TALK OPENLY ABOUT THINGS LIKE 1232 00:47:39,723 --> 00:47:43,060 SUICIDE THE WAY WE HAD DONE IT. 1233 00:47:43,126 --> 00:47:44,261 AND I DIDN'T REALLY UNDERSTAND 1234 00:47:44,328 --> 00:47:45,229 THAT IT WAS GOING TO HAVE THAT 1235 00:47:45,295 --> 00:47:46,797 KIND OF AN IMPACT, BUT I'M 1236 00:47:46,863 --> 00:47:47,564 REALLY GLAD IT DID. 1237 00:47:47,631 --> 00:47:51,401 WE ACTUALLY HAVE A FOLLOW-UP 1238 00:47:51,468 --> 00:47:51,735 PLAN. 1239 00:47:51,802 --> 00:47:52,970 ONE OF THE THINGS THAT IS THE 1240 00:47:53,036 --> 00:47:54,271 MOST IMPACTFUL TO ME AS A 1241 00:47:54,338 --> 00:47:56,240 PHYSICIAN IS WHEN PATIENTS WHO 1242 00:47:56,306 --> 00:47:59,977 HAVE SUFFERED WITH A DISEASE OR 1243 00:48:00,043 --> 00:48:02,246 MALADY DESCRIBE THE EXPERIENCE 1244 00:48:02,312 --> 00:48:04,014 OF THE DISEASE OR THE MALADY, 1245 00:48:04,081 --> 00:48:05,882 AND ONE OF THE ISSUES WITH 1246 00:48:05,949 --> 00:48:06,883 SUICIDE IS, YOU DON'T GET A 1247 00:48:06,950 --> 00:48:10,587 CHANCE TO TALK TO THOSE PEOPLE. 1248 00:48:10,654 --> 00:48:13,223 BUT WE HAVE PEOPLE WHO HAVE COME 1249 00:48:13,290 --> 00:48:14,658 VERY CLOSE, WE HAVE FAMILY 1250 00:48:14,725 --> 00:48:19,263 MEMBERS OF THOSE WHO DIED BY 1251 00:48:19,329 --> 00:48:20,564 SUICIDE, AND THAT'S THE NEXT 1252 00:48:20,631 --> 00:48:22,366 PROGRAM, IS ACTUALLY TO BRING A 1253 00:48:22,432 --> 00:48:25,969 SMALL GROUP OF INDIVIDUALS IN 1254 00:48:26,036 --> 00:48:27,804 WHO HAD NEAR MISSES OR HAD 1255 00:48:27,871 --> 00:48:32,175 FAMILY MEMBERS AND ACTUALLY HAVE 1256 00:48:32,242 --> 00:48:33,744 AN OPEN CONVERSATION AND 1257 00:48:33,810 --> 00:48:34,278 DIALOGUE. 1258 00:48:34,344 --> 00:48:36,780 IT'S NOT ON THE BOOKS YET BUT IT 1259 00:48:36,847 --> 00:48:37,648 SHOULD BE THERE. 1260 00:48:37,714 --> 00:48:40,484 THERE'S ANOTHER SLIDE ON OUR 1261 00:48:40,550 --> 00:48:47,190 JOINT COMMISSION SURVEY, AND 1262 00:48:47,257 --> 00:48:51,161 THESE ARE THE DATA FROM THE 1263 00:48:51,228 --> 00:48:51,895 SURVEY OF PATIENT SAFETY. 1264 00:48:51,962 --> 00:48:57,367 THIS IS WHAT WE EXPECT TO BE 1265 00:48:57,434 --> 00:48:59,369 DOING IN 2024. 1266 00:48:59,436 --> 00:49:00,570 WE STILL HAVE A FEW KEY 1267 00:49:00,637 --> 00:49:01,571 POSITIONS TO FILL. 1268 00:49:01,638 --> 00:49:02,873 WE'LL CONTINUE TO FOCUS THAT 1269 00:49:02,939 --> 00:49:05,509 WE'VE BEEN ON FOR A WHILE ON 1270 00:49:05,575 --> 00:49:05,976 DEIA. 1271 00:49:06,043 --> 00:49:07,177 WE'RE GOING TO SUCCESSFULLY 1272 00:49:07,244 --> 00:49:08,145 FINISH THE MAGNET JOURNEY AND 1273 00:49:08,211 --> 00:49:09,246 WE'RE GOING TO CONTINUE TO WORK 1274 00:49:09,313 --> 00:49:10,514 ON TAKING GOOD CARE OF CHILDREN 1275 00:49:10,580 --> 00:49:11,481 AND HOPEFULLY CARE FOR MORE 1276 00:49:11,548 --> 00:49:12,382 CHILDREN. 1277 00:49:12,449 --> 00:49:13,850 WE HAVE STAFF WELL-BEING AND 1278 00:49:13,917 --> 00:49:15,585 WE'VE TALKED IN THIS FORUM A 1279 00:49:15,652 --> 00:49:21,491 COUPLE TIMES ABOUT THE FUTURE OF 1280 00:49:21,558 --> 00:49:22,426 WORK AND THAT WILL CONTINUE TO 1281 00:49:22,492 --> 00:49:23,593 BE A FOCUS AREA. 1282 00:49:23,660 --> 00:49:25,128 THE BOARD MEMBERS ALL RECEIVED 1283 00:49:25,195 --> 00:49:27,431 THE QUARTERLY PATIENT SAFETY 1284 00:49:27,497 --> 00:49:28,865 METRICS FROM DR. LANGE AND IF 1285 00:49:28,932 --> 00:49:29,633 YOU HAVE ANY QUESTIONS ABOUT 1286 00:49:29,700 --> 00:49:31,301 THOSE, YOU CAN SEE DR. LANG 1287 00:49:31,368 --> 00:49:35,505 DURING THE BREAK OR SEND US AN 1288 00:49:35,572 --> 00:49:37,808 EMAIL, WE'LL BE HAPPY TO RESPOND 1289 00:49:37,874 --> 00:49:38,241 TO THOSE. 1290 00:49:38,308 --> 00:49:39,676 THIS IS TODAY'S AGENDA. 1291 00:49:39,743 --> 00:49:42,212 AND YOU'VE ALREADY HEARD FROM 1292 00:49:42,279 --> 00:49:43,380 DR. TABAK. 1293 00:49:43,447 --> 00:49:48,385 THIS WILL COMPLETE MY UPDATE DR. 1294 00:49:48,452 --> 00:49:49,886 WE'RE VERY GLAD THAT SHE WAS 1295 00:49:49,953 --> 00:49:53,623 HERE BECAUSE SHE'S BEEN 1296 00:49:53,690 --> 00:49:54,725 PERFORMING THE CIVIC DUTY FOR 1297 00:49:54,791 --> 00:49:56,493 ALL OF US BY BEING ON A JURY 1298 00:49:56,560 --> 00:49:58,395 THIS WEEK AND THE TRIAL IS 1299 00:49:58,462 --> 00:50:02,399 FINALLY OVER, AND SHE'S GOING TO 1300 00:50:02,466 --> 00:50:03,700 TALK TO US ABOUT HEALTH 1301 00:50:03,767 --> 00:50:07,104 DISPARITIES DATA AS YOU ALL ARE 1302 00:50:07,170 --> 00:50:08,505 PROBABLY AWARE, THE JOINT 1303 00:50:08,572 --> 00:50:13,510 COMMISSION AND THE ACCREDITATION 1304 00:50:13,577 --> 00:50:14,678 COUNCIL FOR GRADUATE MEDICAL 1305 00:50:14,745 --> 00:50:15,779 EDUCATION ARE FOCUSED ON THAT. 1306 00:50:15,846 --> 00:50:16,980 IT'S A LITTLE CHALLENGING IN OUR 1307 00:50:17,047 --> 00:50:18,215 ENVIRONMENT TO COME UP WITH 1308 00:50:18,281 --> 00:50:19,182 MEANINGFUL DATA BECAUSE WE DON'T 1309 00:50:19,249 --> 00:50:22,386 TAKE CARE OF -- WE DON'T HAVE 1310 00:50:22,452 --> 00:50:24,488 COVERED LIVES, WE DON'T HAVE 1311 00:50:24,554 --> 00:50:25,555 POPULATIONS, AND WE DON'T TAKE 1312 00:50:25,622 --> 00:50:27,224 CARE OF COMMON DISEASES, SO 1313 00:50:27,290 --> 00:50:28,291 ACTUALLY HEALTH DISPARITIES DATA 1314 00:50:28,358 --> 00:50:29,860 IS A LITTLE BIT HARDER TO 1315 00:50:29,926 --> 00:50:31,161 DEVELOP, BUT COLLEEN HAS BEEN 1316 00:50:31,228 --> 00:50:33,029 WORKING ON THIS FOR QUITE A 1317 00:50:33,096 --> 00:50:34,564 WHILE WITH A NUMBER OF PEOPLE, 1318 00:50:34,631 --> 00:50:36,333 AND SHE'S GOING TO SHOW YOU WHAT 1319 00:50:36,400 --> 00:50:36,867 WE HAVE. 1320 00:50:36,933 --> 00:50:38,735 THEN WE HAVE A COUPLE OF 1321 00:50:38,802 --> 00:50:39,836 PRESENTATIONS THAT, AGAIN, 1322 00:50:39,903 --> 00:50:41,405 RELATE TO OUR ABILITY TO TAKE 1323 00:50:41,471 --> 00:50:43,573 GOOD CARE OF CHILDREN. 1324 00:50:43,640 --> 00:50:45,976 YOU'RE GOING TO HEAR FROM 1325 00:50:46,042 --> 00:50:48,145 DR. BIANCHI, THE DIRECTOR OF THE 1326 00:50:48,211 --> 00:50:49,746 NATIONAL INSTITUTE -- ACTUALLY 1327 00:50:49,813 --> 00:50:51,615 IT'S THE EUNICE KENNEDY SHRIVER 1328 00:50:51,681 --> 00:50:52,783 INSTITUTE OF CHILD HEALTH AND 1329 00:50:52,849 --> 00:50:53,450 HUMAN DEVELOPMENT. 1330 00:50:53,517 --> 00:50:54,918 SHE WOULD WANT US TO USE THE 1331 00:50:54,985 --> 00:50:57,320 ENTIRE NAME. 1332 00:50:57,387 --> 00:51:02,559 AND DR. BRIGITTE WIDEMANN, CHIEF 1333 00:51:02,626 --> 00:51:04,895 OF THE PEDIATRIC ONCOLOGY BRANCH 1334 00:51:04,961 --> 00:51:06,763 FOR CHILDHOOD CANCER ARE GOING 1335 00:51:06,830 --> 00:51:08,632 TO TALK ABOUT THEIR WORKING 1336 00:51:08,698 --> 00:51:10,734 GROUP LOOKING AT THE STRATEGIC 1337 00:51:10,801 --> 00:51:12,269 LANDSCAPE FOR DOING RESEARCH IN 1338 00:51:12,335 --> 00:51:14,571 CHILDREN. 1339 00:51:14,638 --> 00:51:15,472 AND THEN AFTER THE BREAK YOU'RE 1340 00:51:15,539 --> 00:51:17,574 GOING TO GET A GREAT 1341 00:51:17,641 --> 00:51:20,644 PRESENTATION FROM JENNIE LUCCA 1342 00:51:20,710 --> 00:51:21,878 ABOUT THE CHILDREN'S INN. 1343 00:51:21,945 --> 00:51:23,513 I DON'T BELIEVE THIS GROUP HAS 1344 00:51:23,580 --> 00:51:25,749 HAD A PRESENTATION IN ITS 1345 00:51:25,816 --> 00:51:27,651 ENTIRETY OF ITS EXISTENCE ABOUT 1346 00:51:27,717 --> 00:51:28,885 THE CHILDREN'S INN. 1347 00:51:28,952 --> 00:51:29,986 YOU ARE GOING TO LIKE THAT 1348 00:51:30,053 --> 00:51:30,554 PRESENTATION. 1349 00:51:30,620 --> 00:51:34,257 YOU'LL GET A SECOND DOSE OF 1350 00:51:34,324 --> 00:51:35,292 DR. WIDEMANN IN THAT 1351 00:51:35,358 --> 00:51:37,594 PRESENTATION AS THE PATIENT WHO 1352 00:51:37,661 --> 00:51:39,229 IS FEATURED IN THAT PRESENTATION 1353 00:51:39,296 --> 00:51:40,864 IS ONE OF HERS. 1354 00:51:40,931 --> 00:51:43,700 AND THEN WE'LL HAVE THE ANNUAL 1355 00:51:43,767 --> 00:51:44,468 FACILITIES UPDATE. 1356 00:51:44,534 --> 00:51:47,204 THIS GROUP GETS UPDATED EVERY 1357 00:51:47,270 --> 00:51:49,506 YEAR ABOUT OUR CURRENT 1358 00:51:49,573 --> 00:51:51,608 FACILITIES PROJECTS BY DAN 1359 00:51:51,675 --> 00:51:52,209 WHEELAND. 1360 00:51:52,275 --> 00:51:53,276 SO THANK YOU ALL FOR BEING HERE. 1361 00:51:53,343 --> 00:51:55,679 THANK YOU ALL WHO ARE ON THE 1362 00:51:55,745 --> 00:51:58,315 VIRTUAL ROOM, AND DAVID HAS GOT 1363 00:51:58,381 --> 00:52:03,687 A QUESTION, AND THEN REGINA 1364 00:52:03,753 --> 00:52:03,887 DOES. 1365 00:52:03,954 --> 00:52:06,456 >> I JUST SAW -- NOTED WHAT TO 1366 00:52:06,523 --> 00:52:08,325 EXPECT IN 2024 DIDN'T HAVE 1367 00:52:08,391 --> 00:52:11,661 ANYTHING ABOUT THE EHR PROJECT. 1368 00:52:11,728 --> 00:52:12,963 >> THE EHR PROJECT. 1369 00:52:13,029 --> 00:52:14,097 WELL, THERE IS A LOT GOING ON 1370 00:52:14,164 --> 00:52:15,599 WITH THE EHR PROJECT. 1371 00:52:15,665 --> 00:52:17,033 WE ACTUALLY HAD A MEETING THIS 1372 00:52:17,100 --> 00:52:18,969 WEEK, BUT IT'S ALL GROUNDWORK. 1373 00:52:19,035 --> 00:52:21,071 IT'S NOT FUNDED. 1374 00:52:21,137 --> 00:52:25,575 AND SO IT ALL GROUNDWORK TRYING 1375 00:52:25,642 --> 00:52:28,645 TO MAP A NUMBER OF CLINICAL 1376 00:52:28,712 --> 00:52:34,317 WORKFLOWS THAT WILL HELP INFORM 1377 00:52:34,384 --> 00:52:37,754 THE GROUP THAT WILL BE 1378 00:52:37,821 --> 00:52:40,290 RESPONSIBLE FOR PRODUCING THE 1379 00:52:40,357 --> 00:52:40,690 EHR. 1380 00:52:40,757 --> 00:52:42,459 >> DO THOSE WORK FLOWS HELP THE 1381 00:52:42,526 --> 00:52:43,593 MAGNET PROJECT? 1382 00:52:43,660 --> 00:52:46,663 >> THEY DON'T, BECAUSE THE 1383 00:52:46,730 --> 00:52:48,832 MAGNET PAPERWORK HAS TO BE IN IN 1384 00:52:48,899 --> 00:52:50,700 APRIL, SO THE WORKFLOWS WON'T -- 1385 00:52:50,767 --> 00:52:52,702 IT'S JUST -- IT'S A HEAD SPACE 1386 00:52:52,769 --> 00:52:57,674 AND TIMING ISSUE. 1387 00:52:57,741 --> 00:52:59,876 USE YOUR MICROPHONE, HIT THE 1388 00:52:59,943 --> 00:53:00,443 "ON" BUTTON. 1389 00:53:00,510 --> 00:53:01,545 >> THANKS, DR. GILMAN. 1390 00:53:01,611 --> 00:53:02,679 JUST A QUICK QUESTION ABOUT THE 1391 00:53:02,746 --> 00:53:04,047 EMPLOYEE SURVEY THAT YOU 1392 00:53:04,114 --> 00:53:04,481 MENTIONED. 1393 00:53:04,548 --> 00:53:05,749 I THINK I HEARD YOU SAY THAT 1394 00:53:05,815 --> 00:53:06,816 CONTRACTED STAFF WERE NOT 1395 00:53:06,883 --> 00:53:11,555 INCLUDED IN THAT SURVEY. 1396 00:53:11,621 --> 00:53:13,089 MY QUESTION WAS ABOUT WHAT 1397 00:53:13,156 --> 00:53:13,990 PERCENT OF THE STAFF WERE 1398 00:53:14,057 --> 00:53:14,324 CONTRACTED? 1399 00:53:14,391 --> 00:53:16,426 I WAS JUST CURIOUS IF YOU COULD 1400 00:53:16,493 --> 00:53:17,093 SPEAK TO THAT. 1401 00:53:17,160 --> 00:53:19,963 >> I'LL TRY TO GET THAT NUMBER 1402 00:53:20,030 --> 00:53:21,031 FOR YOU. 1403 00:53:21,097 --> 00:53:24,200 I WOULD -- BALLPARK FIGURE WOULD 1404 00:53:24,267 --> 00:53:31,775 BE PROBABLY 15 TO 20%. 1405 00:53:31,841 --> 00:53:33,543 IT GETS COMPLICATED WHEN YOU 1406 00:53:33,610 --> 00:53:34,878 TALK ABOUT THE HEAD COUNT OR THE 1407 00:53:34,945 --> 00:53:36,513 NUMBER OF FTEs. 1408 00:53:36,580 --> 00:53:41,351 THERE ARE SOME AREAS THAT ARE 1409 00:53:41,418 --> 00:53:45,589 HEAVILY CONTRACTED BECAUSE YOU 1410 00:53:45,655 --> 00:53:50,427 CAN'T POSSIBLY PAY ON A GS SCALE 1411 00:53:50,493 --> 00:53:52,495 WHAT THE MARKET IS, AND THERE 1412 00:53:52,562 --> 00:53:55,565 ARE OTHERS THAT ARE ALMOST 1413 00:53:55,632 --> 00:53:59,402 ENTIRELY -- AND THEN THERE ARE 1414 00:53:59,469 --> 00:54:00,604 SOME -- THERE ARE SOME 1415 00:54:00,670 --> 00:54:03,707 AUTHORITIES THAT ONLY A FEDERAL 1416 00:54:03,773 --> 00:54:05,575 GOVERNMENT EMPLOYEE CAN HAVE. 1417 00:54:05,642 --> 00:54:10,947 SO THOSE ARE ALL FEDERAL 1418 00:54:11,014 --> 00:54:11,481 POSITIONS. 1419 00:54:11,548 --> 00:54:11,748 STEPHANIE? 1420 00:54:11,815 --> 00:54:12,916 >> THANKS, DR. GILMAN. 1421 00:54:12,983 --> 00:54:13,817 IF SHOULD KNOW THIS. 1422 00:54:13,883 --> 00:54:15,452 DID THE JOINT COMMISSION SKIP A 1423 00:54:15,518 --> 00:54:17,487 YEAR BECAUSE OF THE PANDEMIC? 1424 00:54:17,554 --> 00:54:21,091 >> NO, THEY WERE HERE IN 2020. 1425 00:54:21,157 --> 00:54:24,127 AND WE HAD SIGNIFICANT ISSUES -- 1426 00:54:24,194 --> 00:54:24,995 NO, 2021. 1427 00:54:25,061 --> 00:54:27,230 THEY WERE HERE IN 2021. 1428 00:54:27,297 --> 00:54:29,966 THEY CAME IN AUGUST OF 2021. 1429 00:54:30,033 --> 00:54:32,936 IF YOU'LL RECALL, WE HAD ISSUES 1430 00:54:33,003 --> 00:54:37,907 WITH OUR STERILE PROCESSING, AND 1431 00:54:37,974 --> 00:54:39,175 WE'VE DONE A LOT OF WORK THERE. 1432 00:54:39,242 --> 00:54:41,411 WE'RE ACTUALLY IN THE NEW 1433 00:54:41,478 --> 00:54:45,048 B1 STERILE PROCESSING, AND SO 1434 00:54:45,115 --> 00:54:46,683 WE'RE HOPEFUL BUT WE KNOW 1435 00:54:46,750 --> 00:54:47,884 THEY'RE GOING TO LOOK REALLY, 1436 00:54:47,951 --> 00:54:51,755 REALLY HARD AT IT, AND SO WE'LL 1437 00:54:51,821 --> 00:54:52,088 SEE. 1438 00:54:52,155 --> 00:54:54,524 DAVID? 1439 00:54:54,591 --> 00:54:58,228 >> DR. GILMAN, TERRIFIC UPDATE. 1440 00:54:58,294 --> 00:54:59,329 THE PRESENTATION AROUND THE 1441 00:54:59,396 --> 00:55:02,532 SUICIDE PREV PREVENTION CAUGHT Y 1442 00:55:02,599 --> 00:55:02,732 EYE. 1443 00:55:02,799 --> 00:55:03,733 IT TERRIFIC YOU'RE TAKING THE 1444 00:55:03,800 --> 00:55:04,067 LEAD HERE. 1445 00:55:04,134 --> 00:55:06,469 I WAS CURIOUS, THOUGH, THAT 1446 00:55:06,536 --> 00:55:08,238 FIRST HEADLINE SAID SUICIDE 1447 00:55:08,304 --> 00:55:08,805 GRATES ARE UP. 1448 00:55:08,872 --> 00:55:11,408 I KNOW IT'S UP IN A SECULAR WAY. 1449 00:55:11,474 --> 00:55:12,642 IS IT ALSO UP AT THE NIH? 1450 00:55:12,709 --> 00:55:14,511 >> I DON'T KNOW THAT THE NIH HAS 1451 00:55:14,577 --> 00:55:17,113 FIGURES ON THAT. 1452 00:55:17,180 --> 00:55:18,682 IN THE MILITARY, WE WOULD KNOW, 1453 00:55:18,748 --> 00:55:20,283 BECAUSE WE WOULD KNOW WHO WAS IN 1454 00:55:20,350 --> 00:55:24,487 THE SERVICE AND WHO WASN'T. 1455 00:55:24,554 --> 00:55:26,322 I WILL TELL YOU THAT IN THE LAST 1456 00:55:26,389 --> 00:55:29,793 TWO YEARS, AND AGAIN, IT ALWAYS 1457 00:55:29,859 --> 00:55:30,326 SMALL NUMBERS. 1458 00:55:30,393 --> 00:55:33,797 I MEAN -- BUT YOU KNOW THAT 1459 00:55:33,863 --> 00:55:34,864 THAT'S KIND OF THE TIP OF THE 1460 00:55:34,931 --> 00:55:36,566 ICEBERG. 1461 00:55:36,633 --> 00:55:41,638 BUT WE STARTED THAT PRESENTATION 1462 00:55:41,705 --> 00:55:44,607 BY -- I INTRODUCED THE 1463 00:55:44,674 --> 00:55:45,809 PRESENTATION BY SAYING THE NAMES 1464 00:55:45,875 --> 00:55:47,310 OF FOUR PEOPLE AT THE CLINICAL 1465 00:55:47,377 --> 00:55:49,079 CENTER WHO HAD DIED BY SUICIDE 1466 00:55:49,145 --> 00:55:51,614 IN THE LAST TWO YEARS. 1467 00:55:51,681 --> 00:55:52,282 OKAY? 1468 00:55:52,348 --> 00:55:53,850 AND AGAIN, WHEN IT COMES TO 1469 00:55:53,917 --> 00:55:57,020 STAFF WELL-BEING AND MORALE AND 1470 00:55:57,087 --> 00:55:59,989 RETENTION AND ALL THE THINGS, 1471 00:56:00,056 --> 00:56:03,159 YOU KNOW, THAT'S THE TIP OF THE 1472 00:56:03,226 --> 00:56:07,864 TIP OF THE ICEBERG. 1473 00:56:07,931 --> 00:56:08,865 ONE OF THE THINGS PEOPLE TALK TO 1474 00:56:08,932 --> 00:56:11,167 ME ABOUT, THEY SAID, "YOU SAID 1475 00:56:11,234 --> 00:56:12,035 THE NAMES." 1476 00:56:12,102 --> 00:56:14,170 AND THE PEOPLE WHO KNEW THEM 1477 00:56:14,237 --> 00:56:19,809 REALLY, REALLY APPRECIATED THAT. 1478 00:56:19,876 --> 00:56:22,779 AND -- YEAH. 1479 00:56:22,846 --> 00:56:23,880 AND IT'S SOMETHING WE HAVE TO 1480 00:56:23,947 --> 00:56:28,218 TALK ABOUT. 1481 00:56:28,284 --> 00:56:29,853 WE CAN'T JUST HAVE CONFERENCES 1482 00:56:29,919 --> 00:56:31,488 ABOUT IT AND TALK ABOUT IT IN 1483 00:56:31,554 --> 00:56:32,789 A -- YOU KNOW, IN AN AGGREGATE 1484 00:56:32,856 --> 00:56:32,989 WAY. 1485 00:56:33,056 --> 00:56:38,094 WE HAVE TO TALK ABOUT THE PEOPLE 1486 00:56:38,161 --> 00:56:40,597 THAT WE MISS. 1487 00:56:40,663 --> 00:56:41,364 SO -- YEAH. 1488 00:56:41,431 --> 00:56:42,132 >> KUDOS. 1489 00:56:42,198 --> 00:56:45,001 >> YEAH. 1490 00:56:45,068 --> 00:56:47,303 >> DR. GILMAN ON THE SAME TOPIC. 1491 00:56:47,370 --> 00:56:48,938 IT SOUNDS LIKE IT WAS EXTREMELY 1492 00:56:49,005 --> 00:56:49,205 POWERFUL. 1493 00:56:49,272 --> 00:56:51,808 IN THE PAST, PAT HAS SENT US 1494 00:56:51,875 --> 00:56:53,243 REPORTINGS OF SOME OF THE 1495 00:56:53,309 --> 00:56:56,746 SPECIAL PROGRAMS YOU HAVE DONE. 1496 00:56:56,813 --> 00:57:02,385 DO WE HAVE ACCESS TO LOOK AT IT? 1497 00:57:02,452 --> 00:57:03,386 >> I BELIEVE THAT ONE IS 1498 00:57:03,453 --> 00:57:04,354 RECORDED AND I BELIEVE YOU CAN 1499 00:57:04,420 --> 00:57:05,388 HAVE ACCESS TO THAT ONE. 1500 00:57:05,455 --> 00:57:07,557 I WILL DOUBLE-CHECK. 1501 00:57:07,624 --> 00:57:07,757 OKAY? 1502 00:57:07,824 --> 00:57:09,592 >> THANK YOU, DR. GILMAN. 1503 00:57:09,659 --> 00:57:18,268 >> TONY? 1504 00:57:18,334 --> 00:57:19,402 TONI? 1505 00:57:19,469 --> 00:57:20,937 >> THEY'VE ALREADY COVERED MY 1506 00:57:21,004 --> 00:57:23,039 QUESTION REGARDING HOW MANY HAVE 1507 00:57:23,106 --> 00:57:25,742 THE SUICIDES HERE AT NIH GONE UP 1508 00:57:25,809 --> 00:57:27,443 SO I WILL GO ON TO MY NEXT 1509 00:57:27,510 --> 00:57:28,011 QUESTION. 1510 00:57:28,077 --> 00:57:31,147 IN REFERENCE TO THE SURVEYS, HOW 1511 00:57:31,214 --> 00:57:32,048 WERE THEY SENT OUT? 1512 00:57:32,115 --> 00:57:34,584 WERE THEY SENT TO FOLKS BY 1513 00:57:34,651 --> 00:57:36,452 EMAIL, PAPER SURVEYS? 1514 00:57:36,519 --> 00:57:37,887 >> IT WAS EMAIL. 1515 00:57:37,954 --> 00:57:39,422 IT WAS SENT OUT OVER EMAIL. 1516 00:57:39,489 --> 00:57:40,757 IT'S A VIRTUAL SURVEY. 1517 00:57:40,824 --> 00:57:44,360 >> AND HOW MANY PEOPLE WAS IT 1518 00:57:44,427 --> 00:57:45,695 SENT TO, DO YOU THINK? 1519 00:57:45,762 --> 00:57:47,096 >> SO I'M NOT SURE WHICH SURVEY 1520 00:57:47,163 --> 00:57:47,697 YOU'RE TALKING ABOUT. 1521 00:57:47,764 --> 00:57:49,165 IF YOU'RE TALKING ABOUT THE 1522 00:57:49,232 --> 00:57:50,667 FEDERAL EMPLOYEE VIEWPOINT 1523 00:57:50,733 --> 00:57:53,636 SURVEY, THAT GOES TO ALL FEDERAL 1524 00:57:53,703 --> 00:57:56,606 EMPLOYEES THAT HAVE BEEN HERE, 1525 00:57:56,673 --> 00:57:57,774 USUALLY IT STARTS WITH THE 1526 00:57:57,841 --> 00:57:58,675 FISCAL -- START OF THE FISCAL 1527 00:57:58,741 --> 00:57:59,342 YEAR. 1528 00:57:59,409 --> 00:58:02,312 IT GOES -- SO IN THE CLINICAL 1529 00:58:02,378 --> 00:58:05,281 CENTER, THAT WOULD BE ABOUT 16- 1530 00:58:05,348 --> 00:58:05,682 OR 1700 PEOPLE. 1531 00:58:05,748 --> 00:58:07,617 IF YOU'RE TALKING ABOUT THE 1532 00:58:07,684 --> 00:58:08,585 SURVEY OF PATIENT SAFETY WHERE 1533 00:58:08,651 --> 00:58:12,622 WE ONLY GOT ABOUT 600 RETURNED, 1534 00:58:12,689 --> 00:58:14,457 THAT WENT TO LIKE 5,000 PEOPLE. 1535 00:58:14,524 --> 00:58:14,924 YEAH. 1536 00:58:14,991 --> 00:58:17,026 THAT'S THE ONE. 1537 00:58:17,093 --> 00:58:18,228 AND IT GOES TO EVERYBODY THAT 1538 00:58:18,294 --> 00:58:22,165 SORT OF HAS ANY CLINICAL 1539 00:58:22,232 --> 00:58:22,565 RESPONSIBILITIES. 1540 00:58:22,632 --> 00:58:30,006 AND AGAIN, THERE IS UNDOUBTEDLY 1541 00:58:30,073 --> 00:58:32,575 AN ELEMENT OF SURVEY FATIGUE AT 1542 00:58:32,642 --> 00:58:34,711 THE NIH. 1543 00:58:34,777 --> 00:58:36,880 IT'S DURING THE PANDEMIC, PARTLY 1544 00:58:36,946 --> 00:58:39,515 DUE TO THE PANDEMIC AND PARTLY 1545 00:58:39,582 --> 00:58:41,918 DUE THAT WE LOVE DATA, WE REALLY 1546 00:58:41,985 --> 00:58:46,122 LIKE TO DO SURVEYS, AND SURVEYS 1547 00:58:46,189 --> 00:58:48,758 ARE HOW YOU CAN GET SIGNIFICANT 1548 00:58:48,825 --> 00:58:49,959 NUMBERS, BUT IT'S CLEAR TO ME 1549 00:58:50,026 --> 00:58:51,527 THAT IT'S HARDER AND HARDER TO 1550 00:58:51,594 --> 00:58:53,663 GET PEOPLE TO DO ONLINE SURVEYS. 1551 00:58:53,730 --> 00:58:54,597 >> ONE MORE QUESTION. 1552 00:58:54,664 --> 00:58:57,333 HOW LONG DID THE SURVEY TAKE, 1553 00:58:57,400 --> 00:58:58,868 LIKE A TIME? 1554 00:58:58,935 --> 00:59:01,437 >> THEY'RE USUALLY DESIGNED TO 1555 00:59:01,504 --> 00:59:02,739 ONLY TAKE -- I WOULD SAY THE 1556 00:59:02,805 --> 00:59:03,773 FEDERAL EMPLOYEE VIEWPOINT 1557 00:59:03,840 --> 00:59:05,675 SURVEY AT MOST WOULD TAKE YOU 20 1558 00:59:05,742 --> 00:59:06,376 MINUTES. 1559 00:59:06,442 --> 00:59:07,577 THE SURVEY OF PATIENT SAFETY, 1560 00:59:07,644 --> 00:59:11,848 PROBABLY ABOUT THE SAME. 1561 00:59:11,915 --> 00:59:13,449 IT'S NOT HOURS. 1562 00:59:13,516 --> 00:59:14,951 ONCE YOU GET STARTED, YOU CAN GO 1563 00:59:15,018 --> 00:59:17,587 PRETTY FAST. 1564 00:59:17,654 --> 00:59:17,887 BUT -- YEAH. 1565 00:59:17,954 --> 00:59:18,454 >> OKAY. 1566 00:59:18,521 --> 00:59:19,155 THANK YOU. 1567 00:59:19,222 --> 00:59:21,791 >> 10 MINUTES -- DR. LANG SAYS 1568 00:59:21,858 --> 00:59:23,026 10 MINUTES FOR THE SURVEY OF 1569 00:59:23,092 --> 00:59:23,660 PATIENT SAFETY. 1570 00:59:23,726 --> 00:59:25,662 I'M A SLOW READER, IT MIGHT TAKE 1571 00:59:25,728 --> 00:59:27,630 ME 20. 1572 00:59:27,697 --> 00:59:28,498 OKAY. 1573 00:59:28,564 --> 00:59:28,965 JACK? 1574 00:59:29,032 --> 00:59:31,234 >> ON THAT EMPLOYEE SURVEY, I'VE 1575 00:59:31,301 --> 00:59:32,702 SEEN IN OTHER AGENCIES WHERE 1576 00:59:32,769 --> 00:59:34,771 THERE'S BEEN A COMPARISON TO THE 1577 00:59:34,837 --> 00:59:38,007 TOTAL FEDERAL EMPLOYEE WORKFO 1578 00:59:38,074 --> 00:59:38,608 WORKFORCE. 1579 00:59:38,675 --> 00:59:41,477 >> NIH DOES REALLY WELL, I THINK 1580 00:59:41,544 --> 00:59:45,782 OUR NUMBERS FARE WELL. 1581 00:59:45,848 --> 00:59:47,383 SO I KNOW THIS IS BEING WEBCAST. 1582 00:59:47,450 --> 00:59:53,356 I DON'T KNOW THAT EVERYBODY 1583 00:59:53,423 --> 00:59:55,758 COULD VETS THE LEADERSHIP SPOT 1584 00:59:55,825 --> 00:59:56,826 AND NASA HAS BEEN THE LEADER 1585 00:59:56,893 --> 00:59:57,293 FOREVER. 1586 00:59:57,360 --> 01:00:01,397 NOW, WE THINK THEY CHEAT, BUT AS 1587 01:00:01,464 --> 01:00:03,099 A MATTER OF FACT WE'RE PRETTY 1588 01:00:03,166 --> 01:00:04,300 CONFIDENT THEY CHEAT. 1589 01:00:04,367 --> 01:00:05,034 AS A MATTER OF FACT THAT WAS 1590 01:00:05,101 --> 01:00:06,469 EVEN DISCUSSED AT THE INSTITUTE 1591 01:00:06,536 --> 01:00:07,837 DIRECTORS' MEETING A WEEK OR SO 1592 01:00:07,904 --> 01:00:11,441 AGO. 1593 01:00:11,507 --> 01:00:14,577 BUT "BEAT NASA" IS SORT OF THE 1594 01:00:14,644 --> 01:00:15,912 SUBTEXT TO THE SORT OF 1595 01:00:15,979 --> 01:00:16,179 FEDERAL -- 1596 01:00:16,245 --> 01:00:17,380 >> THIS IS WHY I ASKED THE 1597 01:00:17,447 --> 01:00:17,647 QUESTION. 1598 01:00:17,714 --> 01:00:18,881 >> THANK YOU. 1599 01:00:18,948 --> 01:00:20,783 AGAIN, WE TALKED LAST YEAR, 1600 01:00:20,850 --> 01:00:22,552 JACK, AND YOU SAID, MOST PEOPLE 1601 01:00:22,618 --> 01:00:24,187 WOULD BE REALLY HAPPY WITH THOSE 1602 01:00:24,253 --> 01:00:25,388 NUMBERS, JIM. 1603 01:00:25,455 --> 01:00:27,056 AND I GOT IT. 1604 01:00:27,123 --> 01:00:28,992 BUT I STILL WANT TO DO BETTER. 1605 01:00:29,058 --> 01:00:31,361 THANKS. 1606 01:00:31,427 --> 01:00:32,795 >> JIM, I HAVE ONE QUESTION. 1607 01:00:32,862 --> 01:00:35,031 SO IN TERMS OF SURVEY FATIGUE 1608 01:00:35,098 --> 01:00:37,200 BEING REAL, BUT WHAT ABOUT REAL 1609 01:00:37,266 --> 01:00:38,634 FATIGUE AND RESILIENCE? 1610 01:00:38,701 --> 01:00:39,836 WHAT ARE YOU SEEING AND HEARING 1611 01:00:39,902 --> 01:00:40,636 AROUND THAT? 1612 01:00:40,703 --> 01:00:46,576 >> SO THAT'S WHY THIS WORKPLACE 1613 01:00:46,642 --> 01:00:49,946 WELLNESS GROUP HAS STOOD UP. 1614 01:00:50,013 --> 01:00:53,683 ANN BERGER AND JOHN POLLACK 1615 01:00:53,750 --> 01:00:55,985 TALKED ABOUT THAT AT THE LAST 1616 01:00:56,052 --> 01:00:57,286 CLINICAL CENTER RESEARCH 1617 01:00:57,353 --> 01:00:58,187 HOSPITAL BOARD MEETING. 1618 01:00:58,254 --> 01:01:00,089 AN NHAS LEFT BUT WE HAVE PEOPLE 1619 01:01:00,156 --> 01:01:00,957 FILLING IN BEHIND HER. 1620 01:01:01,024 --> 01:01:03,292 AND I THINK -- I HATE TO SAY IT 1621 01:01:03,359 --> 01:01:04,427 BUT THERE'S GOING TO BE ANOTHER 1622 01:01:04,494 --> 01:01:05,428 SURVEY THAT GOES OUT TO THE 1623 01:01:05,495 --> 01:01:06,462 CLINICAL CENTER STAFF IN A WEEK 1624 01:01:06,529 --> 01:01:08,965 OR SO THAT'S, QUOTE, A BURNOUT 1625 01:01:09,032 --> 01:01:12,602 SURVEY. 1626 01:01:12,668 --> 01:01:17,907 SO I BELIEVE -- I ABSOLUTELY 1627 01:01:17,974 --> 01:01:21,511 BELIEVE THAT -- BUT IT'S REALLY 1628 01:01:21,577 --> 01:01:23,312 HARD TO KNOW WHAT WE'RE GOING TO 1629 01:01:23,379 --> 01:01:23,913 DO ABOUT IT. 1630 01:01:23,980 --> 01:01:25,114 SO MAYBE WE'LL GET SOME IDEAS 1631 01:01:25,181 --> 01:01:25,782 FROM THE SURVEY. 1632 01:01:25,848 --> 01:01:28,184 MAYBE WE WON'T GET VERY MANY 1633 01:01:28,251 --> 01:01:31,421 SURVEYS BACK AND PEOPLE ARE 1634 01:01:31,487 --> 01:01:32,855 BURNED OUT ABOUT SURVEYS, SO 1635 01:01:32,922 --> 01:01:38,528 WE'LL SEE, BUT WE DO HAVE -- 1636 01:01:38,594 --> 01:01:39,562 EACH DEPARTMENT HAS SORT OF A 1637 01:01:39,629 --> 01:01:41,330 SMALL WELLNESS GROUP, A SMALL 1638 01:01:41,397 --> 01:01:43,266 WELLNESS COMMITTEE, SOMEBODY 1639 01:01:43,332 --> 01:01:44,867 THERE WHO INTERFACES WITH THE 1640 01:01:44,934 --> 01:01:48,771 HOSPITAL LEADERSHIP AND IS SORT 1641 01:01:48,838 --> 01:01:50,339 OF RESPONSIBLE FOR CONNECTING 1642 01:01:50,406 --> 01:01:51,974 THEM. 1643 01:01:52,041 --> 01:01:57,280 WE HAVE A VERY GOOD BEREAVEMENT 1644 01:01:57,346 --> 01:01:59,015 PROGRAM THAT OUR SPIRITUAL CARE 1645 01:01:59,082 --> 01:01:59,649 FOLKS RUN. 1646 01:01:59,715 --> 01:02:01,417 OUR LATEST IS A CODE LAVENDER, 1647 01:02:01,484 --> 01:02:01,851 RIGHT? 1648 01:02:01,918 --> 01:02:03,352 THAT'S OUR LATEST INITIATIVE, IS 1649 01:02:03,419 --> 01:02:06,756 A CODE LAVENDER, WHICH IS, YOU 1650 01:02:06,823 --> 01:02:08,124 KNOW, YOUR GROUP IS JUST KIND OF 1651 01:02:08,191 --> 01:02:09,725 HAVING A TOUGH TIME AND YOU WANT 1652 01:02:09,792 --> 01:02:13,863 SOME PEOPLE TO COME AROUND AND 1653 01:02:13,930 --> 01:02:15,832 DO A LITTLE HIGH TOUCH AND 1654 01:02:15,898 --> 01:02:20,136 LISTEN AND TALK AND DO THAT. 1655 01:02:20,203 --> 01:02:24,974 WE HAVE A NUMBER OF -- AND WE 1656 01:02:25,041 --> 01:02:29,245 HAVE EMPLOYEE ASSISTANCE PROGRAM 1657 01:02:29,312 --> 01:02:30,680 EFFORTS, AND WE OF COURSE 1658 01:02:30,746 --> 01:02:32,148 ENCOURAGE PEOPLE TO USE OUR 1659 01:02:32,215 --> 01:02:34,684 SPIRITUAL CARE DEPARTMENT. 1660 01:02:34,750 --> 01:02:37,186 OKAY. 1661 01:02:37,253 --> 01:02:38,154 >> THANKS VERY MUCH. 1662 01:02:38,221 --> 01:02:39,255 APPRECIATE IT. 1663 01:02:39,322 --> 01:02:40,823 ANY OTHER QUESTIONS FOR 1664 01:02:40,890 --> 01:02:41,157 DR. GILMAN? 1665 01:02:41,224 --> 01:02:42,892 IF NOT, WE'RE JUST A LITTLE BIT 1666 01:02:42,959 --> 01:02:44,894 AHEAD OF TIME BUT WITH 1667 01:02:44,961 --> 01:02:45,895 DR. HADIGAN HERE, WE'LL GO 1668 01:02:45,962 --> 01:02:47,330 AHEAD, CHIEF MEDICAL OFFICER FOR 1669 01:02:47,396 --> 01:02:48,231 THE CLINICAL CENTER, A POSITION 1670 01:02:48,297 --> 01:02:49,999 THAT SHE'S HELD SINCE OCTOBER OF 1671 01:02:50,066 --> 01:02:51,968 2021, WHEN SHE BECAME THE CHIEF 1672 01:02:52,034 --> 01:02:53,436 MEDICAL OFFICER AND CLINICAL 1673 01:02:53,503 --> 01:02:54,137 DIRECTOR FOR THE CLINICAL 1674 01:02:54,203 --> 01:02:55,571 CENTER. 1675 01:02:55,638 --> 01:02:57,473 COLLEEN WILL SHARE HER EXCELLENT 1676 01:02:57,540 --> 01:02:58,674 PRESENTATION ON THE CLINICAL 1677 01:02:58,741 --> 01:03:00,109 CENTER'S ACTION PLAN AND 1678 01:03:00,176 --> 01:03:01,744 APPROACH TO IDENTIFYING AND 1679 01:03:01,811 --> 01:03:03,679 ADDRESSING HEALTHCARE 1680 01:03:03,746 --> 01:03:04,981 DISPARITIES IN THE PATIENT 1681 01:03:05,047 --> 01:03:11,020 POPULATION THAT WE HAVE. 1682 01:03:11,087 --> 01:03:12,622 >> I AM REALLY HAPPY TO BE HERE 1683 01:03:12,688 --> 01:03:14,323 AND NOT IN MONTGOMERY COUNTY 1684 01:03:14,390 --> 01:03:15,191 COURT, AND ALSO BECAUSE I HAVE 1685 01:03:15,258 --> 01:03:16,392 BEEN WORKING ON THIS FOR QUITE 1686 01:03:16,459 --> 01:03:17,627 SOME TIME AND I'M REALLY HAPPY 1687 01:03:17,693 --> 01:03:18,761 TO BE ABLE TO BE HERE AND TO 1688 01:03:18,828 --> 01:03:21,364 TAKE QUESTIONS AFTER THE 1689 01:03:21,430 --> 01:03:22,565 PRESENTATION. 1690 01:03:22,632 --> 01:03:23,633 BEFORE I START I'M ACTUALLY 1691 01:03:23,699 --> 01:03:25,735 GOING TO GO COMPLETELY OFF TOPIC 1692 01:03:25,801 --> 01:03:28,538 AND EXPLAIN THAT I WAS BORN AND 1693 01:03:28,604 --> 01:03:30,973 RAISED IN POUGHKEEPSIE, 1694 01:03:31,040 --> 01:03:31,574 NEW YORK. 1695 01:03:31,641 --> 01:03:32,975 SO FOR THOSE OF YOU USING THE 1696 01:03:33,042 --> 01:03:35,144 WORD P KIP SEE I WANT TO CLARIFY 1697 01:03:35,211 --> 01:03:36,846 THERE'S NO B OR C IN 1698 01:03:36,913 --> 01:03:37,180 POUGHKEEPSIE. 1699 01:03:37,246 --> 01:03:38,481 WHEN YOU'RE A FIRST GRADER AND 1700 01:03:38,548 --> 01:03:39,916 YOU HAVE TO SPELL IT IN YOUR 1701 01:03:39,982 --> 01:03:41,684 ADDRESS, YOU LEARN IT QUICKLY, 1702 01:03:41,751 --> 01:03:43,252 THAT IT'S NOT AN EASY WORD TO 1703 01:03:43,319 --> 01:03:43,886 SPELL. 1704 01:03:43,953 --> 01:03:45,521 AND IF ANYBODY WANTS MORE ABOUT 1705 01:03:45,588 --> 01:03:46,689 POUGHKEEPSIE LATER, I CAN FILL 1706 01:03:46,756 --> 01:03:47,423 YOU IN. 1707 01:03:47,490 --> 01:03:47,757 OKAY. 1708 01:03:47,823 --> 01:03:56,199 SO NOW, ON TO THIS. 1709 01:03:56,265 --> 01:03:57,466 AS YOU ALL KNOW, A CRITICAL 1710 01:03:57,533 --> 01:03:58,734 PIECE OF OUR MISSION IN 1711 01:03:58,801 --> 01:04:00,369 DELIVERING CARE FOR OUR RESEARCH 1712 01:04:00,436 --> 01:04:01,604 PATIENTS IS THAT WE'RE COMMITTED 1713 01:04:01,671 --> 01:04:03,439 TO CONTINUOUS IMPROVEMENT OF 1714 01:04:03,506 --> 01:04:04,807 QUALITY AND HEALTH OUTCOMES FOR 1715 01:04:04,874 --> 01:04:06,008 OUR PATIENTS, AND IN ORDER TO DO 1716 01:04:06,075 --> 01:04:08,077 THAT, WE ALSO WANTED TO HAVE 1717 01:04:08,144 --> 01:04:09,779 CONTINUOUS IMPROVEMENT OF THESE 1718 01:04:09,845 --> 01:04:11,647 OUTCOMES BY IDENTIFYING AND 1719 01:04:11,714 --> 01:04:13,382 MONITORING HEALTHCARE 1720 01:04:13,449 --> 01:04:15,384 DISPARITIES WITH THE GOAL TO BE 1721 01:04:15,451 --> 01:04:16,686 ABLE TO ADDRESS THEM AND MEASURE 1722 01:04:16,752 --> 01:04:20,022 THEM IN A MEANINGFUL WAY. 1723 01:04:20,089 --> 01:04:23,392 SO WE DEVELOPED A HEALTH EQUITY 1724 01:04:23,459 --> 01:04:24,327 CLINICAL CENTER STRATEGY, THE 1725 01:04:24,393 --> 01:04:25,962 PURPOSE OF WHICH WAS TO BE ABLE 1726 01:04:26,028 --> 01:04:27,296 TO FULLY RESPOND TO THE JOINT 1727 01:04:27,363 --> 01:04:28,164 COMMISSION HEALTH EQUITY 1728 01:04:28,231 --> 01:04:29,532 STANDARDS WHICH ASK US TO 1729 01:04:29,599 --> 01:04:30,733 IDENTIFY HEALTHCARE DISPARITIES 1730 01:04:30,800 --> 01:04:35,171 IN OUR PATIENT POPULATION TO 1731 01:04:35,238 --> 01:04:37,607 STRATIFY QUALITY AND SAFETY DATA 1732 01:04:37,673 --> 01:04:38,708 USING SOCIODEMOGRAPHIC 1733 01:04:38,774 --> 01:04:39,342 CHARACTERISTICS AT THE CLINICAL 1734 01:04:39,408 --> 01:04:40,376 CENTER, AND WE'VE DEVELOPED AN 1735 01:04:40,443 --> 01:04:43,546 ACTION PLAN TO APPROACH THIS, 1736 01:04:43,613 --> 01:04:45,014 TO IDENTIFY IT AND HOPEFULLY BE 1737 01:04:45,081 --> 01:04:46,382 ABLE TO MAKE IMPROVEMENTS. 1738 01:04:46,449 --> 01:04:47,917 I HAVE BEEN LEADING THIS BUT 1739 01:04:47,984 --> 01:04:49,752 HAVE BEEN WORK CLOSELY WITH 1740 01:04:49,819 --> 01:04:52,622 DR. LANG, WITH TRISH COFFEY AND 1741 01:04:52,688 --> 01:04:54,390 HEALTH INFORMATION MANAGEMENT 1742 01:04:54,457 --> 01:04:57,226 AND CECE HENRY, SCIENTIFIC 1743 01:04:57,293 --> 01:04:58,628 DIVERSITY ADVISER, CRITICAL TO 1744 01:04:58,694 --> 01:05:01,797 THIS DATA COLLECTION WAS A 1745 01:05:01,864 --> 01:05:02,999 PRESIDENTIAL MANAGEMENT FELLOW 1746 01:05:03,065 --> 01:05:04,467 WHO WORKED WITH ME TO GET THESE 1747 01:05:04,533 --> 01:05:08,938 DATA PUT TOGETHER. 1748 01:05:09,005 --> 01:05:10,373 OUR PLANNED STRATEGY AND 1749 01:05:10,439 --> 01:05:11,607 ACTIVITIES WILL BE THAT 1750 01:05:11,674 --> 01:05:13,743 ANNUALLY, WE WILL PUT TOGETHER 1751 01:05:13,809 --> 01:05:16,679 SUMMARY DATA OF INPATIENT HEALTH 1752 01:05:16,746 --> 01:05:18,247 OUTCOMES BEGINNING WITH FISCAL 1753 01:05:18,314 --> 01:05:19,148 YEAR 2022, WHICH IS THE DATA 1754 01:05:19,215 --> 01:05:21,684 I'LL BE SHARING WITH YOU TODAY. 1755 01:05:21,751 --> 01:05:23,119 IDENTIFY FOCUS AREAS FOR 1756 01:05:23,185 --> 01:05:24,120 ADDRESSING HEALTHCARE 1757 01:05:24,186 --> 01:05:25,021 DISPARITIES THAT ARE CAPTURED 1758 01:05:25,087 --> 01:05:26,389 FROM OUR DATA REPORTING, AND 1759 01:05:26,455 --> 01:05:28,324 THEN MONITOR AND EVALUATE ANNUAL 1760 01:05:28,391 --> 01:05:29,759 REPORT THEREAFTER TO SEE IF WE 1761 01:05:29,825 --> 01:05:31,594 CAN MEASURE CHANGE OR PROGRESS, 1762 01:05:31,661 --> 01:05:35,097 AND THEN EVALUATE AND STRATIFY 1763 01:05:35,164 --> 01:05:35,965 THE PATIENT SATISFACTION DATA, 1764 01:05:36,032 --> 01:05:37,300 SOME OF WHICH I'VE SHARED WITH 1765 01:05:37,366 --> 01:05:39,201 THIS GROUP BEFORE USING OUR 1766 01:05:39,268 --> 01:05:41,804 PRESS GANEY SURVEY DATA WHICH I 1767 01:05:41,871 --> 01:05:43,139 WON'T BE PRESENTING HERE TODAY. 1768 01:05:43,205 --> 01:05:44,540 NOW AS DR. GILMAN CLEARLY 1769 01:05:44,607 --> 01:05:45,675 ALLUDED TO, THIS IS A 1770 01:05:45,741 --> 01:05:47,310 CHALLENGING TOPIC FOR US BECAUSE 1771 01:05:47,376 --> 01:05:51,047 WE DON'T FALL UNDER A LOT OF THE 1772 01:05:51,113 --> 01:05:52,982 NORMAL RUBRICS OF WHAT'S USED TO 1773 01:05:53,049 --> 01:05:54,617 IDENTIFY DISPARITIES OR HEALTH 1774 01:05:54,684 --> 01:05:55,251 EQUITY. 1775 01:05:55,318 --> 01:05:57,687 WE ARE NOT GOING TO BE LOOKING 1776 01:05:57,753 --> 01:05:59,588 AT PERCENT OF INDIVIDUALS WHO 1777 01:05:59,655 --> 01:06:01,490 HAD COLON CANCER SCREENING OR 1778 01:06:01,557 --> 01:06:03,559 HAVE HEMOGLOBIN A1Cs WITHIN 1779 01:06:03,626 --> 01:06:08,397 THEIR TARGET GOALS. 1780 01:06:08,464 --> 01:06:10,499 I ALSO WILL NOT BE PRESENTING 1781 01:06:10,566 --> 01:06:11,500 DATA RELATED TO ACCESS. 1782 01:06:11,567 --> 01:06:12,768 IT DOESN'T MEAN THAT WE WON'T 1783 01:06:12,835 --> 01:06:15,037 EVENTUALLY GET THERE, BECAUSE 1784 01:06:15,104 --> 01:06:17,106 OBVIOUSLY ACCESS TO CLINICAL 1785 01:06:17,173 --> 01:06:19,508 RESEARCH CARE SHOULD BE 1786 01:06:19,575 --> 01:06:21,277 EQUITABLE. 1787 01:06:21,344 --> 01:06:22,545 AND IS AN AREA THAT IS 1788 01:06:22,611 --> 01:06:25,514 OF FOCUS, PARTICULARLY AMONG 1789 01:06:25,581 --> 01:06:26,449 MANY OF OUR ICs. 1790 01:06:26,515 --> 01:06:29,051 HOWEVER, AS THE CLINICAL CENTER 1791 01:06:29,118 --> 01:06:30,786 CMO AND OUR DATA, I ONLY SEE THE 1792 01:06:30,853 --> 01:06:32,455 PEOPLE WHO GET ENROLLED IN 1793 01:06:32,521 --> 01:06:32,755 TRIALS. 1794 01:06:32,822 --> 01:06:33,923 SO IN OTHER WORDS THE DATA ON 1795 01:06:33,989 --> 01:06:35,558 WHO'S BEING SCREENED AND NOT 1796 01:06:35,624 --> 01:06:36,459 MAKING IT INTO THE CLINICAL 1797 01:06:36,525 --> 01:06:38,427 CENTER, I DON'T HAVE THE 1798 01:06:38,494 --> 01:06:39,261 DENOMINATOR. 1799 01:06:39,328 --> 01:06:41,063 SO IN ORDER TO KNOW WHETHER OR 1800 01:06:41,130 --> 01:06:42,631 NOT WHO'S COMING IN IS 1801 01:06:42,698 --> 01:06:43,632 REPRESENTATIVE OF WHO'S EITHER 1802 01:06:43,699 --> 01:06:45,401 BEEN REFERRED OR WHO HAS ACCESS 1803 01:06:45,468 --> 01:06:47,203 IS A TRICKIER QUESTION THAT WE 1804 01:06:47,269 --> 01:06:49,905 HAVE YET TO FIGURE OUT A CLEAR 1805 01:06:49,972 --> 01:06:53,175 WAY TO LOOK AT IT. 1806 01:06:53,242 --> 01:06:54,710 SO WHAT I AM GOING TO SHOW YOU 1807 01:06:54,777 --> 01:06:56,278 IS I WANT TO SAY, THIS IS MY 1808 01:06:56,345 --> 01:07:01,784 FIRST AT BAT, OKAY, SO JUST BE 1809 01:07:01,851 --> 01:07:02,852 PATIENT AND KNOW THAT I INTEND 1810 01:07:02,918 --> 01:07:04,253 TO WORK ON THIS TO MAKE IT AND 1811 01:07:04,320 --> 01:07:05,621 REFINE IT BETTER AS WE GO 1812 01:07:05,688 --> 01:07:06,822 FORWARD, BUT WE WANTED TO START 1813 01:07:06,889 --> 01:07:08,391 SOMEWHERE AND WE TRIED THE BEST 1814 01:07:08,457 --> 01:07:09,925 WE COULD WITH WHAT WE KNEW WE 1815 01:07:09,992 --> 01:07:11,427 COULD LOOK AT. 1816 01:07:11,494 --> 01:07:13,062 WHICH IS ALSO WHY WE'RE FOCUSING 1817 01:07:13,129 --> 01:07:14,330 ON INPATIENT DATA FOR WHICH WE 1818 01:07:14,397 --> 01:07:17,933 HAVE BETTER METRICS AND EASIER 1819 01:07:18,000 --> 01:07:19,068 POLLABLE OUTCOMES RELATED TO 1820 01:07:19,135 --> 01:07:20,736 SOME OF THE STANDARD BENCHMARK 1821 01:07:20,803 --> 01:07:21,704 OUTCOMES. 1822 01:07:21,771 --> 01:07:25,107 SO THE SOCIODEMOGRAPHIC 1823 01:07:25,174 --> 01:07:25,941 CHARACTERISTICS OR SOCIAL 1824 01:07:26,008 --> 01:07:28,144 DETERMINANTS OF HEALTH THAT WE 1825 01:07:28,210 --> 01:07:30,946 HAVE ARE SEX, AGE, RACE, 1826 01:07:31,013 --> 01:07:33,983 ETHNICITY, PREFERRED OR 1827 01:07:34,049 --> 01:07:35,518 PREDOMINANT LANGUAGE, AND 1828 01:07:35,584 --> 01:07:36,719 CATEGORIZED FOR THE SAKE OF THIS 1829 01:07:36,786 --> 01:07:39,288 AS ENGLISH OR NON-ENGLISH, 1830 01:07:39,355 --> 01:07:42,458 INSURANCE STATUS, AND Z CODES. 1831 01:07:42,525 --> 01:07:43,559 NOW, FOR THOSE OF YOU WHO MAY 1832 01:07:43,626 --> 01:07:45,761 NOT BE FAMILIAR WITH Z CODES, 1833 01:07:45,828 --> 01:07:49,331 THESE ARE USED TO IDENTIFY AND 1834 01:07:49,398 --> 01:07:51,000 ASSIGN DIFFERENT VULNERABILITIES 1835 01:07:51,066 --> 01:07:53,369 WITHIN PATIENT POPULATIONS TO 1836 01:07:53,436 --> 01:07:54,437 CERTAIN SOCIODEMOGRAPHIC 1837 01:07:54,503 --> 01:07:54,870 CHARACTERISTICS. 1838 01:07:54,937 --> 01:07:57,440 THE WAY THAT WE GENERATE Z CODES 1839 01:07:57,506 --> 01:08:00,409 AT THE CLINICAL CENTER IS THAT 1840 01:08:00,476 --> 01:08:04,413 TRISH COFFEY'S GROUP IN HIMD 1841 01:08:04,480 --> 01:08:06,515 DOES CHART REVIEW AND IF THEY 1842 01:08:06,582 --> 01:08:07,716 IDENTIFY THE PRESENCE OF 1843 01:08:07,783 --> 01:08:08,751 EVALUATION OR DOCUMENTATION OF 1844 01:08:08,818 --> 01:08:10,820 ONE OF THESE ISSUES, SUCH AS 1845 01:08:10,886 --> 01:08:11,821 CHALLENGES RELATED TO EDUCATION 1846 01:08:11,887 --> 01:08:14,557 AND LITERACY, UNEMPLOYMENT OR 1847 01:08:14,623 --> 01:08:16,392 JOB INSECURITY, OR HOUSING 1848 01:08:16,459 --> 01:08:17,493 INSECURITY, THOSE WERE THE KEY 1849 01:08:17,560 --> 01:08:19,161 CODES THAT WE LOOKED FOR, THEN 1850 01:08:19,228 --> 01:08:22,698 THAT WILL BE -- THAT WAS 1851 01:08:22,765 --> 01:08:23,699 DISCOVERABLE AND ADDED TO THE 1852 01:08:23,766 --> 01:08:24,333 DATASET. 1853 01:08:24,400 --> 01:08:25,768 BUT IT'S REALLY IMPORTANT TO 1854 01:08:25,835 --> 01:08:27,336 NOTE THAT THE ABSENCE OF A Z 1855 01:08:27,403 --> 01:08:29,338 CODE IN OUR DATASET DOES NOT 1856 01:08:29,405 --> 01:08:32,274 MEAN THAT AN INDIVIDUAL WAS 1857 01:08:32,341 --> 01:08:33,042 SYSTEMATICALLY EVALUATED AND 1858 01:08:33,108 --> 01:08:36,178 FOUND NOT TO HAVE AN ISSUE 1859 01:08:36,245 --> 01:08:40,616 RELATED TO THAT CODING. 1860 01:08:40,683 --> 01:08:43,018 IN TERMS OF OUR OUTCOMES, WE'VE 1861 01:08:43,085 --> 01:08:46,322 DECIDED TO LOOK AT LENGTH OF 1862 01:08:46,388 --> 01:08:48,290 STAY WHICH WAS DERIVED FROM THE 1863 01:08:48,357 --> 01:08:49,692 ELECTRONIC MEDICAL RECORD, 1864 01:08:49,758 --> 01:08:51,160 DEATHS WITHIN THE HOSPITAL, 1865 01:08:51,227 --> 01:08:53,596 DEATH WITHIN 30 DAYS OF 1866 01:08:53,662 --> 01:08:55,030 DISCHARGE, UNPLANNED ICU 1867 01:08:55,097 --> 01:08:55,898 ADMISSIONS, SO THESE ARE TRACKED 1868 01:08:55,965 --> 01:08:57,299 THROUGH THE OFFICE OF PATIENT 1869 01:08:57,366 --> 01:08:58,601 SAFETY AND CLINICAL QUALITY, BUT 1870 01:08:58,667 --> 01:09:00,803 IT DOES NOT INCLUDE A PLANNED 1871 01:09:00,870 --> 01:09:02,638 ADMISSION EITHER BECAUSE THE 1872 01:09:02,705 --> 01:09:05,441 PROTOCOL INDICATED AN ICU 1873 01:09:05,508 --> 01:09:07,309 OBSERVATION OR IF IT WAS A 1874 01:09:07,376 --> 01:09:14,049 POST-OP CARE PI CARE PATIENT WHS 1875 01:09:14,116 --> 01:09:16,051 COMPLEX ENOUGH UNPLANNED TO GO 1876 01:09:16,118 --> 01:09:18,020 TO THE ICU. 1877 01:09:18,087 --> 01:09:23,192 THEN THERE ARE THE CENTRAL LINE 1878 01:09:23,259 --> 01:09:24,193 ASSOCIATED BLOODSTREAM 1879 01:09:24,260 --> 01:09:26,595 INFECTIONS I'LL REFER TO AS 1880 01:09:26,662 --> 01:09:26,929 CLABSI. 1881 01:09:26,996 --> 01:09:28,864 THESE ARE DONE THROUGH A 1882 01:09:28,931 --> 01:09:30,399 COMBINATION OF DATA PULLS WHEN 1883 01:09:30,466 --> 01:09:32,935 THERE'S A LINE IS PLACED, 1884 01:09:33,002 --> 01:09:33,802 WHETHER OR NOT THERE'S A 1885 01:09:33,869 --> 01:09:34,837 POSITIVE CULTURE AND THEN 1886 01:09:34,904 --> 01:09:36,272 VERIFIED BY OUR HOSPITAL 1887 01:09:36,338 --> 01:09:39,108 EPIDEMIOLOGY SERVICE. 1888 01:09:39,174 --> 01:09:40,543 CAUTI IS A CATHETER ASSOCIATED 1889 01:09:40,609 --> 01:09:42,177 URINARY TRACT INFECTION 1890 01:09:42,244 --> 01:09:43,012 COLLECTED IN THE SAME WAY. 1891 01:09:43,078 --> 01:09:44,446 SURGICAL SITE INFECTION IS A 1892 01:09:44,513 --> 01:09:46,115 COMBINATION OF EMR PULL FOR 1893 01:09:46,181 --> 01:09:47,650 SURGERY, A POSITIVE BLOOD 1894 01:09:47,716 --> 01:09:49,852 CULTURE, AND THEN A VERIFICATION 1895 01:09:49,919 --> 01:09:52,821 BY HOSPITAL EPIDEMIOLOGY 1896 01:09:52,888 --> 01:09:53,122 SERVICES. 1897 01:09:53,188 --> 01:09:55,858 AND THEN FINALLY, OUR FALLS DATA 1898 01:09:55,925 --> 01:09:57,493 WHICH IS EXTRACTED FROM THE EMR 1899 01:09:57,560 --> 01:10:03,999 AND OUR EVENT REPORTING SYSTEM. 1900 01:10:04,066 --> 01:10:04,900 I APOLOGIZE IF THIS IS HARD TO 1901 01:10:04,967 --> 01:10:05,768 READ BUT THESE ARE THE 1902 01:10:05,834 --> 01:10:07,136 CHARACTERISTICS FOR -- SO I DID 1903 01:10:07,202 --> 01:10:08,804 FISCAL YEAR, NOT CALENDAR YEAR, 1904 01:10:08,871 --> 01:10:11,874 SO THE NUMBERS MAY VARY FROM 1905 01:10:11,941 --> 01:10:13,075 OTHER THINGS IF YOU'VE SEEN THEM 1906 01:10:13,142 --> 01:10:13,809 AS CALENDAR YEAR. 1907 01:10:13,876 --> 01:10:18,314 SO THERE WERE 2900 INPATIENT 1908 01:10:18,380 --> 01:10:21,917 ADMISSIONS DURING FISCAL YEAR 1909 01:10:21,984 --> 01:10:22,685 2022. 1910 01:10:22,751 --> 01:10:24,486 THE AVERAGE AGE OF OUR PATIENTS 1911 01:10:24,553 --> 01:10:25,321 ADMITTED WERE 45. 1912 01:10:25,387 --> 01:10:26,455 THERE'S THE DIFFERENT AGE 1913 01:10:26,522 --> 01:10:28,324 BRACKET DISTRIBUTIONS WHICH WE 1914 01:10:28,390 --> 01:10:29,959 EVALUATED THEM BY THOSE 1915 01:10:30,025 --> 01:10:31,060 CATEGORIES LOOKING FOR 1916 01:10:31,126 --> 01:10:36,198 DIFFERENCES IN AGE OUTCOMES. 1917 01:10:36,265 --> 01:10:40,636 PRO PRETTY EVEN DISTRIBUTION 1918 01:10:40,703 --> 01:10:40,936 MALE/FEMALE. 1919 01:10:41,003 --> 01:10:42,438 IN TERMS OF ENGLISH SPEAKING 1920 01:10:42,504 --> 01:10:43,706 LANGUAGE, THEY WERE 1921 01:10:43,772 --> 01:10:44,573 PREDOMINANTLY ENGLISH-SPEAKING 1922 01:10:44,640 --> 01:10:45,741 BUT THE SECOND MOST FREQUENT 1923 01:10:45,808 --> 01:10:47,409 LANGUAGE WAS SPANISH AND ANOTHER 1924 01:10:47,476 --> 01:10:49,378 SUBPOPULATION OF OTHER FOR THE 1925 01:10:49,445 --> 01:10:51,180 SAKE OF THE FUTURE EVALUATIONS 1926 01:10:51,246 --> 01:10:53,148 IT WILL BE ENGLISH VERSUS 1927 01:10:53,215 --> 01:10:54,350 NON-ENGLISH SO WE INCLUDED THE 1928 01:10:54,416 --> 01:10:57,286 99 A99 IN WITH THE SPANISH SPEA. 1929 01:10:57,353 --> 01:10:59,154 THE Z CODES, THERE WAS VERY 1930 01:10:59,221 --> 01:11:00,489 LIMITED DATA AVAILABLE ON Z 1931 01:11:00,556 --> 01:11:02,625 CODES COMPARED TO THE TOTAL 1932 01:11:02,691 --> 01:11:06,528 CAPTURED WP THE DATASET. 1933 01:11:06,595 --> 01:11:08,197 SO JUST RECOGNIZING THERE'S A 1934 01:11:08,263 --> 01:11:11,000 RELATIVELY SMALL NUMBER, BUT 124 1935 01:11:11,066 --> 01:11:12,201 INDIVIDUALS HAD ANY Z CODE AND 1936 01:11:12,267 --> 01:11:13,302 BECAUSE THE INDIVIDUAL Z CODES 1937 01:11:13,369 --> 01:11:18,574 WERE SO INFREQUENT, THE AN ANALS 1938 01:11:18,641 --> 01:11:20,275 YOU'LL SEE ARE ANY Z CODE. 1939 01:11:20,342 --> 01:11:21,777 THEN THERE'S OUR RACIAL GROUP 1940 01:11:21,844 --> 01:11:22,878 BREAKDOWN AS WELL AS OUR 1941 01:11:22,945 --> 01:11:23,746 ETHNICITY BREAKDOWN WHICH 1942 01:11:23,812 --> 01:11:26,582 FOLLOWS UNDER THE WAY WE CODIFY 1943 01:11:26,649 --> 01:11:29,718 ETHNICITY AND RACE BY FEDERAL 1944 01:11:29,785 --> 01:11:31,587 GOVERNMENT CATEGORIES. 1945 01:11:31,654 --> 01:11:34,056 THESE ARE PATIENTS 1946 01:11:34,123 --> 01:11:34,823 SELF-IDENTIFIED ON ADMISSION. 1947 01:11:34,890 --> 01:11:37,359 THEN INSURANCE STATUS, SO WE 1948 01:11:37,426 --> 01:11:39,328 DON'T BILL. 1949 01:11:39,395 --> 01:11:42,064 SO THAT IS A CHALLENGE FOR US IN 1950 01:11:42,131 --> 01:11:43,866 THE SENSE THAT WE DON'T EVEN 1951 01:11:43,932 --> 01:11:48,370 REQUIRE ROUTINELY COLLECTING 1952 01:11:48,437 --> 01:11:49,438 INSURANCE INFORMATION BUT ON 1953 01:11:49,505 --> 01:11:50,673 ADMISSION WE DO ASK, SO PATIENTS 1954 01:11:50,739 --> 01:11:52,074 CAN SAY YES, I'M INSURED, THEY 1955 01:11:52,141 --> 01:11:54,643 CAN SAY NO, I'M NOT INSURED, BUT 1956 01:11:54,710 --> 01:11:58,280 IN SOME IP INSTANCES IT MIGHT JT 1957 01:11:58,347 --> 01:11:58,614 BE BLANK. 1958 01:11:58,681 --> 01:11:59,882 THEN WHEN IT'S BLANK, I DON'T 1959 01:11:59,948 --> 01:12:01,083 KNOW IF THEY WERE ASKED, IF THEY 1960 01:12:01,150 --> 01:12:02,518 WERE NOT ASKED OR IF THEY 1961 01:12:02,584 --> 01:12:09,291 DECLINED TO ANSWER. 1962 01:12:09,358 --> 01:12:11,560 THEN IN TERMS OF OUTCOMES, AS 1963 01:12:11,627 --> 01:12:12,895 DR. GILMAN SHOWED OUR AVERAGE 1964 01:12:12,961 --> 01:12:17,166 LENGTH OF STAYS ARE 8 OR 9 BUT 1965 01:12:17,232 --> 01:12:18,867 THEN WE HAVE A REALLY WIDE RANGE 1966 01:12:18,934 --> 01:12:20,836 WITH SOME LENGTH OF STAY UP TO 1967 01:12:20,903 --> 01:12:21,837 284 DAYS DURING THAT YEAR. 1968 01:12:21,904 --> 01:12:24,740 IN TERMS OF DEATHS IN HOSPITAL, 1969 01:12:24,807 --> 01:12:25,507 IT'S RELATIVELY INFREQUENT BUT 1970 01:12:25,574 --> 01:12:27,910 THERE WERE 38 DEATHS, THERE WERE 1971 01:12:27,976 --> 01:12:29,378 33 DEATHS AFTER DISCHARGE WITHIN 1972 01:12:29,445 --> 01:12:32,514 30 DAYS, THERE WERE 135 1973 01:12:32,581 --> 01:12:35,484 UNPLANNED ICU ADMISSION AND THEN 1974 01:12:35,551 --> 01:12:38,487 AGAIN, OUR CLABSI, CAUTI AND 1975 01:12:38,554 --> 01:12:39,888 SURGICAL SITE INFECTION RATES 1976 01:12:39,955 --> 01:12:41,557 ARE QUITE LOW AND THERE WERE 28 1977 01:12:41,623 --> 01:12:43,192 FALLS REPORTED THAT YEAR. 1978 01:12:43,258 --> 01:12:43,692 OKAY. 1979 01:12:43,759 --> 01:12:45,661 SO NOW I'M GOING TO WALK YOU 1980 01:12:45,728 --> 01:12:47,296 THROUGH JUST ONE OF THE 1981 01:12:47,362 --> 01:12:49,498 VARIABLES TO KIND OF HELP YOU 1982 01:12:49,565 --> 01:12:51,667 SEE HOW I BROKE IT DOWN AND HOW 1983 01:12:51,734 --> 01:12:52,668 THE ANALYSES WERE DONE, AND THEN 1984 01:12:52,735 --> 01:12:53,836 I'LL SHOW LESS OF THE INDIVIDUAL 1985 01:12:53,902 --> 01:12:56,271 DATA BUT GIVE YOU THE AGGREGATE 1986 01:12:56,338 --> 01:12:57,639 RESULTS. 1987 01:12:57,706 --> 01:12:59,308 AND SO ONE OF THE THINGS HERE IS 1988 01:12:59,375 --> 01:13:01,477 JUST TO SAY THAT WHEN YOU LOOKED 1989 01:13:01,543 --> 01:13:06,849 AT WOMEN VERSUS MEN, WITHIN THE 1990 01:13:06,915 --> 01:13:07,916 DIFFERENT OUTCOMES THAT WE 1991 01:13:07,983 --> 01:13:09,084 MEASURED THERE WERE REALLY NO 1992 01:13:09,151 --> 01:13:09,852 SIGNIFICANT DIFFERENCES WITH 1993 01:13:09,918 --> 01:13:12,888 RESPECT TO LENGTH OF STAY, 1994 01:13:12,955 --> 01:13:14,323 WHETHER OR NOT THEY EXPIRED IN 1995 01:13:14,389 --> 01:13:17,059 THE HOSPITAL OR SHORTLY AFTER 1996 01:13:17,126 --> 01:13:20,129 DISCHARGE, UNPLANNED ICU 1997 01:13:20,195 --> 01:13:24,466 ADMISSIONS WERE SIMILAR, CLABSI 1998 01:13:24,533 --> 01:13:25,934 AND CAUTI WERE SIMILAR. 1999 01:13:26,001 --> 01:13:27,669 THERE WAS A SLIGHT INCREASE IN 2000 01:13:27,736 --> 01:13:29,371 THE PREPONDERANCE OF SURGICAL 2001 01:13:29,438 --> 01:13:31,774 SITE INFECTION IN MEN VERSUS 2002 01:13:31,840 --> 01:13:34,610 WOMEN. 2003 01:13:34,676 --> 01:13:36,044 AND THAT WAS STATISTICALLY 2004 01:13:36,111 --> 01:13:37,012 SIGNIFICANT BY JUST DOING A 2005 01:13:37,079 --> 01:13:39,882 STRAIGHT COMPARISON OF THE 2006 01:13:39,948 --> 01:13:42,918 PERCENTS. 2007 01:13:42,985 --> 01:13:43,685 AND THEN THERE WAS NO DIFFERENCE 2008 01:13:43,752 --> 01:13:45,320 IN FALLS BY SEX. 2009 01:13:45,387 --> 01:13:46,722 SO IN GENERAL, THERE APPEARED TO 2010 01:13:46,789 --> 01:13:50,359 BE AN INCREASED FREQUENCY IN MEN 2011 01:13:50,425 --> 01:13:54,129 VERSUS WOMEN, 50% OF MEN AND 48% 2012 01:13:54,196 --> 01:13:55,531 WERE EQUALLY LIKELY TO HAVE HAD 2013 01:13:55,597 --> 01:13:56,632 A SURGICAL PROCEDURE, SO IT 2014 01:13:56,698 --> 01:13:58,167 WASN'T THAT MEN WERE MORE LIKELY 2015 01:13:58,233 --> 01:13:59,668 TO HAVE SURGERY, BUT WHEN I DID 2016 01:13:59,735 --> 01:14:01,770 A RELATIVE RISK FOR SURGICAL 2017 01:14:01,837 --> 01:14:02,871 SITE INFECTION AND YOU SEE THAT 2018 01:14:02,938 --> 01:14:04,706 WHILE THERE WAS A 4 FOLD 2019 01:14:04,773 --> 01:14:05,707 INCREASED RISK, THE FREQUENCY 2020 01:14:05,774 --> 01:14:08,277 WAS SO LOW THAT IT WAS NOT 2021 01:14:08,343 --> 01:14:09,077 STATISTICALLY SIGNIFICANT WHEN 2022 01:14:09,144 --> 01:14:10,479 LOOKED AT THIS WAY BECAUSE THE 2023 01:14:10,546 --> 01:14:12,548 CONFIDENCE INTERVAL CROSSED 1. 2024 01:14:12,614 --> 01:14:14,049 SO THERE WERE FEW CASES BUT 2025 01:14:14,116 --> 01:14:16,151 STILL SOMETHING POTENTIALLY TO 2026 01:14:16,218 --> 01:14:18,086 LOOK INTO, AND TO CONSIDER IF 2027 01:14:18,153 --> 01:14:19,388 THERE ARE DIFFERENT TYPES OF 2028 01:14:19,454 --> 01:14:21,456 SURGERIES OR DIFFERENT 2029 01:14:21,523 --> 01:14:22,724 VULNERABILITIES RELATED TO MEN 2030 01:14:22,791 --> 01:14:26,528 VERSUS WOMEN IN OUR POPULATION. 2031 01:14:26,595 --> 01:14:29,565 SO THEN IN LOOKING AT RACE FOR 2032 01:14:29,631 --> 01:14:30,966 THE COMPLEXITY OF THE SLIDES AND 2033 01:14:31,033 --> 01:14:35,103 THE SMALLER NUMBERS, AGAIN, RACE 2034 01:14:35,170 --> 01:14:37,072 OTHER THAN ASIAN, BLACK, AFRICAN 2035 01:14:37,139 --> 01:14:39,842 AMERICAN OR WHITE WERE COLLAPSED 2036 01:14:39,908 --> 01:14:41,543 TOGETHER, AND THIS IS THE LENGTH 2037 01:14:41,610 --> 01:14:42,978 OF STAY INFORMATION, AND YOU CAN 2038 01:14:43,045 --> 01:14:44,613 SEE HERE THAT WHITE AND ASIAN 2039 01:14:44,680 --> 01:14:47,282 LENGTH OF STAY DID NOT DIFFER, 2040 01:14:47,349 --> 01:14:48,984 BUT WAS SHORTER THAN LENGTH OF 2041 01:14:49,051 --> 01:14:51,386 STAY FOR THOSE WHO WERE 2042 01:14:51,453 --> 01:14:52,054 BLACK/AFRICAN AMERICAN OR OTHER 2043 01:14:52,120 --> 01:14:57,059 RACE. 2044 01:14:57,125 --> 01:14:58,227 AND THAT'S WHAT I JUST 2045 01:14:58,293 --> 01:14:58,527 SUMMARIZED. 2046 01:14:58,594 --> 01:14:59,561 THERE WERE NO SIGNIFICANT 2047 01:14:59,628 --> 01:15:01,296 DIRVESES BY THE RACE CATEGORIES 2048 01:15:01,363 --> 01:15:03,532 FOR ANY OF THE OTHER OUTCOMES OF 2049 01:15:03,599 --> 01:15:04,566 DEATH IN THE HOSPITAL OR WITHIN 2050 01:15:04,633 --> 01:15:06,635 30 DAYS OF DISCHARGE, UNPLANNED 2051 01:15:06,702 --> 01:15:08,604 ICU ADMISSIONS OR FALLS, AND 2052 01:15:08,670 --> 01:15:10,606 ALSO THE CLABSI, CAUTI AND 2053 01:15:10,672 --> 01:15:11,874 SURGICAL SITE INFECTION WERE NOT 2054 01:15:11,940 --> 01:15:14,176 SIGNIFICANT BUT MAY HAVE BEEN 2055 01:15:14,243 --> 01:15:15,944 TOO FEW NUMBERS WITHIN THE 2056 01:15:16,011 --> 01:15:17,312 DIFFERENT RACE CATEGORIES TO 2057 01:15:17,379 --> 01:15:22,251 DETECT A DIFFERENCE. 2058 01:15:22,317 --> 01:15:23,719 SO NOW TO KIND OF GO THROUGH THE 2059 01:15:23,785 --> 01:15:25,187 AGE CATEGORIES, THERE WERE NO 2060 01:15:25,254 --> 01:15:25,754 SIGNIFICANT DIFFERENCES IN 2061 01:15:25,821 --> 01:15:27,389 LENGTH OF STAY OR ANY OF THE 2062 01:15:27,456 --> 01:15:30,626 MEASURED OUTCOMES FOR AGE, AND 2063 01:15:30,692 --> 01:15:32,928 SIMILARLY FOR ETHNICITY, LATIN 2064 01:15:32,995 --> 01:15:34,696 HISPANIC VERSUS NON-, THERE WERE 2065 01:15:34,763 --> 01:15:35,631 NO SIGNIFICANT DIFFERENCES IN 2066 01:15:35,697 --> 01:15:39,601 LENGTH OF STAY. 2067 01:15:39,668 --> 01:15:40,736 AND NOW WE'RE GOING TO GO TO 2068 01:15:40,802 --> 01:15:41,670 LANGUAGE. 2069 01:15:41,737 --> 01:15:43,672 OKAY. 2070 01:15:43,739 --> 01:15:45,941 SO WHEN DIVIDED BY THOSE WHO 2071 01:15:46,008 --> 01:15:47,876 WERE ENGLISH-SPEAKING OR 2072 01:15:47,943 --> 01:15:50,312 IDENTIFIED AS ENGLISH-PROFICIENT 2073 01:15:50,379 --> 01:15:54,349 VERSUS NON, LENGTH OF STAY WAS 2074 01:15:54,416 --> 01:15:56,752 LONGER. 2075 01:15:56,818 --> 01:15:58,654 LIKELIHOOD OR PERCEPT OR RATE OF 2076 01:15:58,720 --> 01:16:03,926 PERCENT OR RATE OFDEATH WHILE IS 2077 01:16:03,992 --> 01:16:05,527 HIGHER, AS WAS DEATH WITHIN 30 2078 01:16:05,594 --> 01:16:06,528 DAYS OF DISCHARGE, BUT THERE WAS 2079 01:16:06,595 --> 01:16:11,166 NO DIFFERENCE IN FALLS. 2080 01:16:11,233 --> 01:16:12,668 THERE WAS NO SIGNIFICANT 2081 01:16:12,734 --> 01:16:15,203 DIFFERENCE IN UNPLANNED ICU 2082 01:16:15,270 --> 01:16:17,306 ADMISSIONS. 2083 01:16:17,372 --> 01:16:18,307 AND EVEN THOUGH IT LOOKED LIKE 2084 01:16:18,373 --> 01:16:20,309 THE NUMBERS WERE DIFFERENT FOR 2085 01:16:20,375 --> 01:16:21,209 CLABSI, THEY WEREN'T. 2086 01:16:21,276 --> 01:16:24,346 FOR CAUTI, THERE APPEARED TO BE 2087 01:16:24,413 --> 01:16:27,382 HIGHER FREQUENCY OF 2088 01:16:27,449 --> 01:16:28,283 CATHETER-ASSOCIATED URINARY 2089 01:16:28,350 --> 01:16:29,718 TRACT INFECTIONS IN NON-ENGLISH, 2090 01:16:29,785 --> 01:16:30,619 AND THEN SURGICAL SITE INFECTION 2091 01:16:30,686 --> 01:16:32,554 WAS NOT STATISTICALLY DIFFERENT 2092 01:16:32,621 --> 01:16:34,022 BUT APPEARED TO BE HIGHER, 2093 01:16:34,089 --> 01:16:35,190 SLIGHTLY, AT LEAST, IN THE 2094 01:16:35,257 --> 01:16:36,425 NON-ENGLISH. 2095 01:16:36,491 --> 01:16:39,461 SO THEN IN RE-ANALYZING THAT 2096 01:16:39,528 --> 01:16:42,931 DATA, USING THE RELATIVE RISKS, 2097 01:16:42,998 --> 01:16:43,999 THESE WERE SIGNIFICANT. 2098 01:16:44,066 --> 01:16:48,303 SO THE RELATIVE RISK OF DEATH IN 2099 01:16:48,370 --> 01:16:50,572 HOSPITAL WITHIN 30 DAYS WAS 2100 01:16:50,639 --> 01:16:51,173 STATISTICALLY SIGNIFICANT BUT 2101 01:16:51,239 --> 01:16:52,207 WHEN YOU DO THE RELATIVE RISK 2102 01:16:52,274 --> 01:16:53,542 FOR CAUTI AGAIN PROBABLY BECAUSE 2103 01:16:53,608 --> 01:16:55,477 OF THE RELATIVELY SMALL NUMBER, 2104 01:16:55,544 --> 01:16:56,511 THE INSTABILITY OF THE ESTIMATE, 2105 01:16:56,578 --> 01:16:57,980 IT WAS NOT STATISTICALLY 2106 01:16:58,046 --> 01:17:03,819 SIGNIFICANT, BUT STILL HIGHER. 2107 01:17:03,885 --> 01:17:05,220 NOW WHEN WE LOOK AT INSURANCE 2108 01:17:05,287 --> 01:17:08,357 STATUS, AGAIN I'M JUST REMINDING 2109 01:17:08,423 --> 01:17:09,691 THAT THE WAY WE LOOK AT 2110 01:17:09,758 --> 01:17:11,560 INSURANCE STATUS AND 2111 01:17:11,626 --> 01:17:13,028 VULNERABILITY MAY BE CONSIDERED 2112 01:17:13,095 --> 01:17:15,697 THE OPPOSITE WAY O A FEE FOR 2113 01:17:15,764 --> 01:17:16,665 SERVICE HOSPITAL WOULD LOOK AT 2114 01:17:16,732 --> 01:17:17,366 IT. 2115 01:17:17,432 --> 01:17:19,634 A FEE FOR SERVICE HOSPITAL MIGHT 2116 01:17:19,701 --> 01:17:20,936 WORRY THAT THEY'RE 2117 01:17:21,003 --> 01:17:22,037 PREFERENTIALLY RETAINING INSURED 2118 01:17:22,104 --> 01:17:27,342 PATIENTS LONGER, OR -- IN ORDER 2119 01:17:27,409 --> 01:17:28,777 TO GAIN MONEY BUT IN OUR 2120 01:17:28,844 --> 01:17:29,845 INSTANCE, MY CONCERN WAS MORE 2121 01:17:29,911 --> 01:17:32,381 THAT AN INDIVIDUAL WHO WAS 2122 01:17:32,447 --> 01:17:33,882 UNINSURED MAY HAVE NO OTHER 2123 01:17:33,949 --> 01:17:36,952 ALTERNATIVE AND HAVE A PROLONGED 2124 01:17:37,019 --> 01:17:40,022 LENGTH OF STAY IN A RESEARCH 2125 01:17:40,088 --> 01:17:41,089 HOSPITAL BECAUSE OF THEIR 2126 01:17:41,156 --> 01:17:42,290 VULNERABILITY FOR NOT HAVING 2127 01:17:42,357 --> 01:17:44,259 OUTSIDE RESOURCES. 2128 01:17:44,326 --> 01:17:46,661 SO WITH THAT IN MIND, WHEN WE 2129 01:17:46,728 --> 01:17:48,430 LOOKED AT THE DIFFERENCES 2130 01:17:48,497 --> 01:17:50,665 BETWEEN INSURED, UNINSURED, 2131 01:17:50,732 --> 01:17:51,933 WHICH MEANS THAT THEY IDENTIFIED 2132 01:17:52,000 --> 01:17:54,903 AS NO INSURANCE OR WE HAVE NO 2133 01:17:54,970 --> 01:17:56,171 DATA ON IT, WHICH WAS MISSING IN 2134 01:17:56,238 --> 01:17:57,906 A LARGE PERCENT OF THE 2135 01:17:57,973 --> 01:18:00,108 POPULATION THAT WE LOOKED AT, 2136 01:18:00,175 --> 01:18:05,547 THERE WAS A SIGNIFICANTLY HIGHER 2137 01:18:05,614 --> 01:18:07,682 RATE OF UNPLANNED ICU ADMISSION 2138 01:18:07,749 --> 01:18:10,385 FOR THOSE WHO WERE INSURED. 2139 01:18:10,452 --> 01:18:15,724 THERE WAS AN INCREASE IN LENGTH 2140 01:18:15,791 --> 01:18:17,492 OF STAY FOR THOSE WHO EITHER 2141 01:18:17,559 --> 01:18:21,830 WERE INSURED OR YOU UNINSURED 2142 01:18:21,897 --> 01:18:22,931 RELATIVE TO THOSE FOR WHICH 2143 01:18:22,998 --> 01:18:23,698 THERE WAS NO DATA. 2144 01:18:23,765 --> 01:18:25,100 THERE WAS AN INCREASED 2145 01:18:25,167 --> 01:18:26,401 LIKELIHOOD OF DEATH IN HOSPITAL 2146 01:18:26,468 --> 01:18:28,703 AND DEATH WITHIN 30 DAYS OF 2147 01:18:28,770 --> 01:18:29,905 DISCHARGE AMONG THOSE WHO WERE 2148 01:18:29,971 --> 01:18:32,207 INSURED VERSUS THE OTHER GROUPS. 2149 01:18:32,274 --> 01:18:33,508 ALTHOUGH IT WAS NOT 2150 01:18:33,575 --> 01:18:34,276 STATISTICALLY SIGNIFICANT FOR 2151 01:18:34,342 --> 01:18:36,778 THE 30 DAYS. 2152 01:18:36,845 --> 01:18:40,916 AND THEN HIGHER RATES OF INSURED 2153 01:18:40,982 --> 01:18:42,217 CENTRAL LINE ASSOCIATED 2154 01:18:42,284 --> 01:18:43,985 INFECTIONS AND NO DIFFERENCE IN 2155 01:18:44,052 --> 01:18:45,220 CAUTI OR SURGICAL SITE 2156 01:18:45,287 --> 01:18:48,557 INFECTIONS. 2157 01:18:48,623 --> 01:18:49,624 AND THERE WAS NO DIFFERENCE IN 2158 01:18:49,691 --> 01:18:54,863 FALLS BY INSURANCE STATUS. 2159 01:18:54,930 --> 01:18:56,965 SO JUST AS A SUMMARY, AGAIN, 2160 01:18:57,032 --> 01:18:58,366 UNPLANNED ICU ADMISSIONS WERE 2161 01:18:58,433 --> 01:18:59,701 MORE COMMON AMONG THE INSURED, 2162 01:18:59,768 --> 01:19:01,403 DEATH IN HOSPITAL WAS MORE 2163 01:19:01,470 --> 01:19:03,071 COMMON AMONG THE INSURED, AND 2164 01:19:03,138 --> 01:19:04,306 CLABSI WAS MORE FREQUENT AMONG 2165 01:19:04,372 --> 01:19:06,675 THE INSURED. 2166 01:19:06,741 --> 01:19:07,776 COMBINED, TO DO THESE RELATIVE 2167 01:19:07,843 --> 01:19:09,077 RATES, I COMBINED NO INSURANCE 2168 01:19:09,144 --> 01:19:12,114 AND NO DATA FOR THE RELATIVE 2169 01:19:12,180 --> 01:19:14,116 RISK TO THOSE WHO WERE INSURED. 2170 01:19:14,182 --> 01:19:15,317 WHICH IS WHY THE NUMBERS MIGHT 2171 01:19:15,383 --> 01:19:17,619 BE SLIGHTLY DIFFERENT IN THE 2172 01:19:17,686 --> 01:19:19,888 PREVIOUS SLIDES. 2173 01:19:19,955 --> 01:19:22,491 ALL RIGHT, ANY Z CODE. 2174 01:19:22,557 --> 01:19:24,459 SO REMEMBER THERE WAS ONLY 124 2175 01:19:24,526 --> 01:19:25,427 INDIVIDUALS WHO WERE CODED WITH 2176 01:19:25,494 --> 01:19:27,262 A Z CODE SO THE REMAINDER OF THE 2177 01:19:27,329 --> 01:19:30,465 POPULATION HAD NO Z CODE DATA, 2178 01:19:30,532 --> 01:19:33,168 BUT IF YOU THINK ABOUT THE 2179 01:19:33,235 --> 01:19:34,803 LIKELIHOOD OF THERE BEING AN 2180 01:19:34,870 --> 01:19:37,639 ISSUE RESULTING IN A POSITIVE 2181 01:19:37,706 --> 01:19:39,040 DOCUMENTATION SUGGESTS THAT 2182 01:19:39,107 --> 01:19:40,709 THESE ARE PERHAPS MORE 2183 01:19:40,775 --> 01:19:42,210 VULNERABLE INDIVIDUALS WITH 2184 01:19:42,277 --> 01:19:44,946 RESPECT TO HOUSING INSECURITY, 2185 01:19:45,013 --> 01:19:47,582 LITERACY, AND JOB SECURITY. 2186 01:19:47,649 --> 01:19:49,651 SO THERE WERE NO DIFFERENCES IN 2187 01:19:49,718 --> 01:19:51,086 UNPLANNED ICU ADMISSIONS BUT 2188 01:19:51,153 --> 01:19:52,921 THOSE WHO HAD A Z CODE HAD A 2189 01:19:52,988 --> 01:19:56,291 LONGER LENGTH OF STAY. 2190 01:19:56,358 --> 01:19:57,926 THEY HAD A HIGHER RATE OF DEATH 2191 01:19:57,993 --> 01:19:59,794 WITHIN THE HOSPITAL BUT NOT 2192 01:19:59,861 --> 01:20:03,098 AFTER DISCHARGE. 2193 01:20:03,165 --> 01:20:04,966 AND THOSE WERE THE ONLY TWO 2194 01:20:05,033 --> 01:20:06,434 SIGNIFICANT DIFFERENCES THAT 2195 01:20:06,501 --> 01:20:07,969 WERE FOUND AND DEATH IN HOSPITAL 2196 01:20:08,036 --> 01:20:09,204 WAS MORE COMMON WITH ANY SEA. 2197 01:20:09,271 --> 01:20:11,640 CODE WITH A RELATIVE RISK OF 2198 01:20:11,706 --> 01:20:14,509 3.4. 2199 01:20:14,576 --> 01:20:15,944 SO I KNOW THAT'S A LOT OF 2200 01:20:16,011 --> 01:20:16,578 INFORMATION. 2201 01:20:16,645 --> 01:20:17,479 THIS IS A SUMMARY SLIDE AND 2202 01:20:17,546 --> 01:20:18,346 YOU'LL HAVE THESE SLIDES THAT 2203 01:20:18,413 --> 01:20:20,348 YOU CAN LOOK OVER. 2204 01:20:20,415 --> 01:20:25,453 I THINK THAT THE AREA I WAS MOST 2205 01:20:25,520 --> 01:20:27,455 FOCUSED ON WAS THE 2206 01:20:27,522 --> 01:20:28,290 LANGUAGE-RELATED PART WITH 2207 01:20:28,356 --> 01:20:30,292 RESPECT TO NON-ENGLISH-SPEAKING 2208 01:20:30,358 --> 01:20:31,693 PATIENTS HAVING LONG LENGTH OF 2209 01:20:31,760 --> 01:20:32,661 STAY, PERHAPS MORE LIKELY TO 2210 01:20:32,727 --> 01:20:34,396 HAVE A CATHETER-ASSOCIATED 2211 01:20:34,462 --> 01:20:35,397 INFECTION, AND MORE LAKELY TO 2212 01:20:35,463 --> 01:20:39,568 DIE LIKELY TODIE WITHIN THE HOSR 2213 01:20:39,634 --> 01:20:41,670 WITHIN 30 DAYS. 2214 01:20:41,736 --> 01:20:44,940 AND SO IN TERMS OF OUR NEXT 2215 01:20:45,006 --> 01:20:46,274 STEPS, AFTER REVIEWING THESE 2216 01:20:46,341 --> 01:20:48,343 FINDINGS, WE'RE WORKING WITH THE 2217 01:20:48,410 --> 01:20:49,277 HEALTH EQUITY WORKING GROUP TO 2218 01:20:49,344 --> 01:20:53,014 SEE WHAT WE WOULD LIKE TO DO TO 2219 01:20:53,081 --> 01:20:54,616 ADDRESS IT. 2220 01:20:54,683 --> 01:20:55,550 OBVIOUSLY WE'RE GOING TO LOOK AT 2221 01:20:55,617 --> 01:20:59,187 THE DATA THAT WE HAVE GOT UNDER 2222 01:20:59,254 --> 01:21:00,655 FISCAL YEAR 2023 TO SEE IF IT 2223 01:21:00,722 --> 01:21:01,756 MATCHES UP WITH THE OBSERVATIONS 2224 01:21:01,823 --> 01:21:03,191 FROM THIS PAST YEAR. 2225 01:21:03,258 --> 01:21:05,493 BUT WE ALSO WANTED TO IDENTIFY 2226 01:21:05,560 --> 01:21:06,595 SPECIFIC PROJECTS THAT COULD BE 2227 01:21:06,661 --> 01:21:09,064 DESIGNED TO ADDRESS THESE 2228 01:21:09,130 --> 01:21:09,364 DISPARITIES. 2229 01:21:09,431 --> 01:21:10,599 PATIENTS WITH LIMITED 2230 01:21:10,665 --> 01:21:12,467 PROFICIENCY IN ENGLISH ARE 2231 01:21:12,534 --> 01:21:14,336 UNIQUELY VULNERABLE IN OUR 2232 01:21:14,402 --> 01:21:14,703 HOSPITAL. 2233 01:21:14,769 --> 01:21:18,473 AND IN 2023, BEFORE WE EVEN HAD 2234 01:21:18,540 --> 01:21:20,875 THESE DATA, WE ACTUALLY WORKED 2235 01:21:20,942 --> 01:21:22,811 ON CODIFYING OUR POLICY RELATED 2236 01:21:22,877 --> 01:21:27,649 TO LANGUAGE ACCESS. 2237 01:21:27,716 --> 01:21:28,750 WE WERE ALREADY DOING THIS BUT 2238 01:21:28,817 --> 01:21:30,685 WE ADDED SOME ELEMENTS TO IT AND 2239 01:21:30,752 --> 01:21:31,486 I THINK THERE'S MORE THAT'S 2240 01:21:31,553 --> 01:21:33,054 GOING TO HAPPEN IN THIS SPACE. 2241 01:21:33,121 --> 01:21:34,422 BUT OBVIOUSLY THE PURPOSE OF THE 2242 01:21:34,489 --> 01:21:36,191 POLICY IS TO MACK SURE THAT 2243 01:21:36,258 --> 01:21:37,926 LANGUAGE ACCESS SERVICES ARE 2244 01:21:37,993 --> 01:21:39,594 AVAILABLE TO PATIENTS AND THEIR 2245 01:21:39,661 --> 01:21:42,264 CAREGIVERS WITH LIMITED ENGLISH 2246 01:21:42,330 --> 01:21:43,932 PROFICIENCY TO PROMOTE THEIR 2247 01:21:43,999 --> 01:21:46,201 CARE IN A CULTURALLY AND 2248 01:21:46,268 --> 01:21:46,968 LINGUISTICALLY APPROPRIATE 2249 01:21:47,035 --> 01:21:48,303 MANNER CONSISTENT WITH FEDERAL 2250 01:21:48,370 --> 01:21:49,704 LAW REGULATIONS AND POLICIES, 2251 01:21:49,771 --> 01:21:50,905 AND THESE SERVICES ARE AVAILABLE 2252 01:21:50,972 --> 01:21:53,174 IN BOTH ORAL, WRITTEN, AND 2253 01:21:53,241 --> 01:21:54,309 ELECTRONIC FORMS AS WELL AS SIGN 2254 01:21:54,376 --> 01:21:55,377 LANGUAGE AT NO COST TO OUR 2255 01:21:55,443 --> 01:21:56,811 PATIENTS OR CAREGIVERS. 2256 01:21:56,878 --> 01:21:59,214 SO THIS POLICY INCLUDED 2257 01:21:59,281 --> 01:22:00,849 ESTABLISHING AN ENGLISH 2258 01:22:00,915 --> 01:22:02,684 PROFICIENCY REQUIREMENT FOR 2259 01:22:02,751 --> 01:22:03,518 BILINGUAL HEALTHCARE PROVIDERS 2260 01:22:03,585 --> 01:22:06,421 AND SO THE REASON IS THAT IF YOU 2261 01:22:06,488 --> 01:22:08,189 CAN IMAGINE, WE HAVE A LARGE 2262 01:22:08,256 --> 01:22:09,157 SPANISH POPULATION. 2263 01:22:09,224 --> 01:22:11,326 IF YOU'RE A CAREGIVER AT THE 2264 01:22:11,393 --> 01:22:12,694 BEDSIDE AND YOU HAVE SPANISH AS 2265 01:22:12,761 --> 01:22:14,296 A SECOND LANGUAGE, YOU'RE GOING 2266 01:22:14,362 --> 01:22:15,864 TO BE NOT ONLY PREFERENTIALLY 2267 01:22:15,930 --> 01:22:17,499 ASSIGNED TO THOSE PATIENTS BUT 2268 01:22:17,565 --> 01:22:19,467 INCLINED TO USE YOUR LANGUAGE TO 2269 01:22:19,534 --> 01:22:20,535 ASSIST IN THE CARE OF THOSE 2270 01:22:20,602 --> 01:22:20,935 PATIENTS. 2271 01:22:21,002 --> 01:22:23,004 AND WE APPRECIATE THAT, AND WE 2272 01:22:23,071 --> 01:22:24,239 UTILIZE IT, BUT WE ALSO WANT TO 2273 01:22:24,306 --> 01:22:25,774 MAKE SURE THAT WE'RE UTILIZING 2274 01:22:25,840 --> 01:22:27,842 IT APPROPRIATELY. 2275 01:22:27,909 --> 01:22:31,446 AND SO BRENDA ROBLES, WHO IS THE 2276 01:22:31,513 --> 01:22:35,483 LEAD FOR OUR TRANSLATION 2277 01:22:35,550 --> 01:22:37,485 SERVICES AND BILINGUAL STAFFING 2278 01:22:37,552 --> 01:22:38,887 FLUENCY TESTING SHARED THESE 2279 01:22:38,953 --> 01:22:39,554 SLIDES WITH ME. 2280 01:22:39,621 --> 01:22:41,389 AND SO WE IMPLEMENTED THIS, 2281 01:22:41,456 --> 01:22:44,426 AGAIN, IN THE BEGINNING OF 2023 2282 01:22:44,492 --> 01:22:46,261 AS PART OF THE POLICY WE SAID IN 2283 01:22:46,328 --> 01:22:48,697 ORDER TO PRACTICE YOUR JOB IN A 2284 01:22:48,763 --> 01:22:50,332 LANGUAGE OTHER THAN ENGLISH, WE 2285 01:22:50,398 --> 01:22:53,301 ARE GOING TO ESTABLISH THIS 2286 01:22:53,368 --> 01:22:54,602 REQUIREMENT, THAT THE STAFF WHO 2287 01:22:54,669 --> 01:22:56,571 HAS THESE PATIENT CARE DUTIES 2288 01:22:56,638 --> 01:22:58,973 WOULD UNDERGO BILINGUAL FLUENCY 2289 01:22:59,040 --> 01:23:00,508 TESTING TO MAKE SURE THAT THEY 2290 01:23:00,575 --> 01:23:02,677 HAVE SOME BASIC COMPETENCY LEVEL 2291 01:23:02,744 --> 01:23:04,779 IN ORDER TO PERFORM THEIR JOB IN 2292 01:23:04,846 --> 01:23:06,648 A LANGUAGE OTHER THAN ENGLISH AT 2293 01:23:06,715 --> 01:23:08,149 THE BEDSIDE. 2294 01:23:08,216 --> 01:23:10,785 AND THEN WE'VE ALREADY TESTED 2295 01:23:10,852 --> 01:23:12,854 149 STAFF WHO'VE COME FORWARD 2296 01:23:12,921 --> 01:23:13,355 VOLUNTARILY TO DO THIS. 2297 01:23:13,421 --> 01:23:14,422 SO THIS IS NOT INDIVIDUALS WHO 2298 01:23:14,489 --> 01:23:15,724 ARE HIRED TO BE TRANSLATORS. 2299 01:23:15,790 --> 01:23:16,958 THESE ARE INDIVIDUALS DOING 2300 01:23:17,025 --> 01:23:19,961 THEIR BEDSIDE WORK BUT HAVE 2301 01:23:20,028 --> 01:23:21,396 FLUENCY AND SEEK TO BE TESTED IN 2302 01:23:21,463 --> 01:23:24,866 ANOTHER LANGUAGE. 2303 01:23:24,933 --> 01:23:27,469 AND THERE WAS ONLY A 70% SUCCESS 2304 01:23:27,535 --> 01:23:30,138 RATE, SO THAT IS IMPORTANT TO 2305 01:23:30,205 --> 01:23:31,072 RECOGNIZE THAT PEOPLE MAY HAVE 2306 01:23:31,139 --> 01:23:33,108 THOUGHT THAT THEY HAD SUFFICIENT 2307 01:23:33,174 --> 01:23:34,909 FLUENCY BUT THEY MIGHT NOT BE. 2308 01:23:34,976 --> 01:23:37,112 AND SO WE WANT TO MAKE SURE THAT 2309 01:23:37,178 --> 01:23:39,381 WHEN WE'RE PROVIDING CARE AND 2310 01:23:39,447 --> 01:23:42,584 INSTRUCTION THAT WE'RE DOING SO 2311 01:23:42,650 --> 01:23:43,752 APPROPRIATELY AND FAIRLY TO 2312 01:23:43,818 --> 01:23:45,420 EVERYONE, NOT JUST THOSE WHO 2313 01:23:45,487 --> 01:23:46,187 SPEAK ENGLISH. 2314 01:23:46,254 --> 01:23:47,922 SO THIS IS AT LEAST ONE STEP 2315 01:23:47,989 --> 01:23:50,859 THAT WE'VE DONE TO KIND OF 2316 01:23:50,925 --> 01:23:51,526 EARLY-ADDRESS WHAT WE 2317 01:23:51,593 --> 01:23:51,926 IDENTIFIED. 2318 01:23:51,993 --> 01:23:54,462 WE MAY BE WORKING ON SOME VERY 2319 01:23:54,529 --> 01:23:59,100 SPECIFIC CAUTI RELATED CATHETER 2320 01:23:59,167 --> 01:24:00,468 CARE AND INSTRUCTIONS IN SOME OF 2321 01:24:00,535 --> 01:24:03,438 OUR MOST COMMON LANGUAGES AND 2322 01:24:03,505 --> 01:24:05,940 HAVE THEM A LITTLE SPREAD OUT 2323 01:24:06,007 --> 01:24:07,008 ACROSS THE HOSPITAL FOR SOME 2324 01:24:07,075 --> 01:24:07,809 TRAINING BUT OTHER THAN THAT, 2325 01:24:07,876 --> 01:24:09,310 THAT'S WHERE WE ARE RIGHT NOW. 2326 01:24:09,377 --> 01:24:13,581 AND SO I WELCOME QUESTIONS, 2327 01:24:13,648 --> 01:24:14,215 COMMENTS, OR ANY OTHER 2328 01:24:14,282 --> 01:24:15,683 DISCUSSION. 2329 01:24:15,750 --> 01:24:17,419 >> I THINK I SEE CRAIG'S HAND 2330 01:24:17,485 --> 01:24:22,791 UP. 2331 01:24:22,857 --> 01:24:23,758 THANKS VERY MUCH. 2332 01:24:23,825 --> 01:24:24,325 AWESOME PRESENTATION. 2333 01:24:24,392 --> 01:24:25,393 MY QUESTION WAS ABOUT THE 2334 01:24:25,460 --> 01:24:27,162 SIGNIFICANT FINDING REGARDING 2335 01:24:27,228 --> 01:24:27,796 LENGTH OF STAY. 2336 01:24:27,862 --> 01:24:30,665 YOU MAY HAVE COVERED THIS. 2337 01:24:30,732 --> 01:24:32,967 WHAT ARE THE DRIVERS FOR THE 2338 01:24:33,034 --> 01:24:36,371 EXTENDED LENGTH OF STAY WITH 2339 01:24:36,438 --> 01:24:37,105 RELATED DISPARITIES? 2340 01:24:37,172 --> 01:24:40,308 IS IT A ACUTE DISEASE PROBLEM S 2341 01:24:40,375 --> 01:24:42,677 IT A POST-DISCHARGE DISPOSITION 2342 01:24:42,744 --> 01:24:42,911 PROBLEM? 2343 01:24:42,977 --> 01:24:46,114 WHAT'S DRAIFING THAT EXTENDED 2344 01:24:46,181 --> 01:24:47,182 LENGTH OF STAY IN THAT 2345 01:24:47,248 --> 01:24:48,983 POPULATION? 2346 01:24:49,050 --> 01:24:54,856 >> SO THINGS THAT HIGH LENGTH OF 2347 01:24:54,923 --> 01:24:56,825 STAY WAS HAVING ANY Z CODE AND 2348 01:24:56,891 --> 01:25:01,162 NOT SPEAKING ENGLISH. 2349 01:25:01,229 --> 01:25:02,297 SO ONE OF THE THINGS WE KNOW IS 2350 01:25:02,363 --> 01:25:03,131 THAT WE HAVE PATIENTS WHO COME 2351 01:25:03,198 --> 01:25:04,599 FROM ALL OVER THE WORLD, AND SO 2352 01:25:04,666 --> 01:25:05,834 INDIVIDUALS WITH RARE DISEASES 2353 01:25:05,900 --> 01:25:09,137 WHO COME TO US 2354 01:25:09,204 --> 01:25:10,338 NON-ENGLISH-SPEAKING WITHOUT 2355 01:25:10,405 --> 01:25:12,006 NECESSARILY APPROPRIATE 2356 01:25:12,073 --> 01:25:15,477 RESOURCES TO LIVE LOCALLY, TO 2357 01:25:15,543 --> 01:25:17,979 HAVE STEPDOWN CARE LOCALLY ARE 2358 01:25:18,046 --> 01:25:19,647 GOING TO HAVE LONGER LENGTHS OF 2359 01:25:19,714 --> 01:25:20,515 STAY. 2360 01:25:20,582 --> 01:25:22,050 AND SO MANY OF -- I KNOW IF I 2361 01:25:22,116 --> 01:25:24,018 BROUGHT THAT DATA TO MY 2362 01:25:24,085 --> 01:25:24,919 INVESTIGATORS AND TEAMS, THEY'RE 2363 01:25:24,986 --> 01:25:26,187 LIKE, WELL, OF COURSE I HAVE 2364 01:25:26,254 --> 01:25:27,522 LONG LENGTH OF STAY. 2365 01:25:27,589 --> 01:25:28,590 MY PATIENT CAME HERE FROM A 2366 01:25:28,656 --> 01:25:30,258 FOREIGN COUNTRY, THEY HAVE A 2367 01:25:30,325 --> 01:25:30,959 COMPLEX DISEASE, THEY'RE GOING 2368 01:25:31,025 --> 01:25:32,327 TO GO THROUGH A TRANSPLANT, 2369 01:25:32,393 --> 01:25:34,395 WE'RE GOING TO HAVE A LONG 2370 01:25:34,462 --> 01:25:35,396 LENGTH OF STAY. 2371 01:25:35,463 --> 01:25:37,799 SO WE EXPECTED SOME OF THAT, BUT 2372 01:25:37,866 --> 01:25:39,534 I THINK WE STILL NEED TO BE 2373 01:25:39,601 --> 01:25:41,002 SENSITIVE TO IT AND TO MAKE SURE 2374 01:25:41,069 --> 01:25:44,906 THAT WHEN THERE ARE 2375 01:25:44,973 --> 01:25:47,342 OPPORTUNITIES FOR ALTERNATE 2376 01:25:47,408 --> 01:25:47,976 NON-INPATIENT CARE THAT WE 2377 01:25:48,042 --> 01:25:49,377 SHOULD BE WORKING ON THAT. 2378 01:25:49,444 --> 01:25:56,518 BUT WE HAVE THE LODGE, THE 2379 01:25:56,584 --> 01:25:59,187 EDMOND J. SAF FINANCIAL, ER 2380 01:25:59,254 --> 01:26:00,221 LODGE, AND YOU'RE GOING TO HEAR 2381 01:26:00,288 --> 01:26:01,656 ABOUT THE CHILDREN'S INN, AND 2382 01:26:01,723 --> 01:26:03,091 THAT ALSO HELPS TO ALLOW PEOPLE 2383 01:26:03,157 --> 01:26:04,926 TO BE CLOSE TO THE NIH, STILL 2384 01:26:04,993 --> 01:26:06,027 FAR AWAY FROM HOME AND GET THAT 2385 01:26:06,094 --> 01:26:10,532 CARE. 2386 01:26:10,598 --> 01:26:11,833 BUT I THINK THERE'S A 2387 01:26:11,900 --> 01:26:13,134 PREDISPOSITION FOR SOME OF THOSE 2388 01:26:13,201 --> 01:26:14,168 INDIVIDUALS BE LESS LIKELY TO 2389 01:26:14,235 --> 01:26:15,203 HAVE THE RESOURCES THEY NEED TO 2390 01:26:15,270 --> 01:26:16,871 BE ABLE TO BE DISCHARGED IN A 2391 01:26:16,938 --> 01:26:17,639 TIMELY MANNER. 2392 01:26:17,705 --> 01:26:18,072 >> GREAT. 2393 01:26:18,139 --> 01:26:18,940 THANK YOU VERY MUCH. 2394 01:26:19,007 --> 01:26:21,376 >> DAVID? 2395 01:26:21,442 --> 01:26:23,778 >> HELLO, DR. HADIGAN. 2396 01:26:23,845 --> 01:26:24,479 TERRIFIC PRESENTATION, AND 2397 01:26:24,546 --> 01:26:25,847 THANKS TO YOUR TEAM AND YOU FOR 2398 01:26:25,914 --> 01:26:26,381 DOING THIS WORK. 2399 01:26:26,447 --> 01:26:29,117 I HAD A QUESTION FOR AT LEAST 2400 01:26:29,183 --> 01:26:30,518 THE U.S. POPULATION THAT COMES 2401 01:26:30,585 --> 01:26:32,921 TO THE CLINICAL CENTER. 2402 01:26:32,987 --> 01:26:35,790 HAVE YOU CONSIDERED USING ZIP 2403 01:26:35,857 --> 01:26:37,292 CODES OR AREA DEPRIVATION INDEX 2404 01:26:37,358 --> 01:26:38,526 FOR THAT POPULATION? 2405 01:26:38,593 --> 01:26:39,294 >> WE DID. 2406 01:26:39,360 --> 01:26:42,463 WE DISCUSSED IT AND WE STILL MAY 2407 01:26:42,530 --> 01:26:43,197 DO IT. 2408 01:26:43,264 --> 01:26:45,400 WE WERE CONCERNED HOW WERE WE 2409 01:26:45,466 --> 01:26:48,469 GOING TO HANDLE ALL THE NON-U.S. 2410 01:26:48,536 --> 01:26:50,872 ZIP CODES, WHICH IS NOT 2411 01:26:50,939 --> 01:26:52,073 INSUBSTANTIAL. 2412 01:26:52,140 --> 01:26:53,408 BUT IT SOMETHING THAT WE TALKED 2413 01:26:53,474 --> 01:26:55,109 ABOUT AND WE DECIDED WE WOULD 2414 01:26:55,176 --> 01:26:58,212 LOOK AT THE Z CODES FIRST. 2415 01:26:58,279 --> 01:26:59,414 TRISH'S TEAM HAD BEEN DOING THE 2416 01:26:59,480 --> 01:27:01,149 WORK, BUT THEN WHEN I SAW HOW 2417 01:27:01,215 --> 01:27:02,383 LITTLE CAME BACK, I THINK WE 2418 01:27:02,450 --> 01:27:03,785 COULD DO THAT IN A SECOND ROUND 2419 01:27:03,851 --> 01:27:04,986 APPROACH OR ADD IT ON TO THE 2420 01:27:05,053 --> 01:27:07,322 NEXT ROUND. 2421 01:27:07,388 --> 01:27:08,590 >> THANK YOU. 2422 01:27:08,656 --> 01:27:11,859 >> DR. DEVASKAR. 2423 01:27:11,926 --> 01:27:12,994 >> THANK YOU. 2424 01:27:13,061 --> 01:27:13,528 AM I HEARD? 2425 01:27:13,595 --> 01:27:14,529 THANK YOU, DR. HADIGAN. 2426 01:27:14,596 --> 01:27:15,663 THAT WAS A WONDERFUL 2427 01:27:15,730 --> 01:27:15,997 PRESENTATION. 2428 01:27:16,064 --> 01:27:16,698 THANK YOU FOR THAT. 2429 01:27:16,764 --> 01:27:17,932 AND ALL THE WORK THAT WENT INTO 2430 01:27:17,999 --> 01:27:19,534 IT. 2431 01:27:19,601 --> 01:27:20,868 I HAVE JUST A FEW QUESTIONS. 2432 01:27:20,935 --> 01:27:24,672 ONE IS, DID YOU LOOK AT PATIENT 2433 01:27:24,739 --> 01:27:26,040 EXPERIENCE ALONG THESE LINES, 2434 01:27:26,107 --> 01:27:28,643 PARTICULARLY WITH THE SOCIAL 2435 01:27:28,710 --> 01:27:31,579 VULNERABILITY INDEX AND THEIR 2436 01:27:31,646 --> 01:27:32,080 SATISFACTION? 2437 01:27:32,146 --> 01:27:34,315 AND THE REASON I ASK THAT IS, 2438 01:27:34,382 --> 01:27:37,151 MANY PLACES HAVE INSTITUTED 2439 01:27:37,218 --> 01:27:40,521 REALTIME HEALTH EQUITY CHECKS ON 2440 01:27:40,588 --> 01:27:42,090 AN EITHER DAILY OR EVERY OTHER 2441 01:27:42,156 --> 01:27:43,858 DAY BASIS, AND I WONDERED IF 2442 01:27:43,925 --> 01:27:46,694 THAT WOULD HELP IN YOUR 2443 01:27:46,761 --> 01:27:49,197 SITUATION. 2444 01:27:49,263 --> 01:27:50,298 SO THAT WAS ONE QUESTION. 2445 01:27:50,365 --> 01:27:50,965 THE SECOND ONE PARTICULARLY FOR 2446 01:27:51,032 --> 01:27:55,069 THE LIMITED ENGLISH PROFICIENCY 2447 01:27:55,136 --> 01:27:56,304 PATIENTS, DO YOU HAVE 2448 01:27:56,371 --> 01:27:58,940 SIMULTANEOUS TRANSLATION DURING 2449 01:27:59,007 --> 01:28:00,241 ROUNDS AND OTHER THINGS WHEN 2450 01:28:00,308 --> 01:28:02,877 MEDICAL INFORMATION IS BEING 2451 01:28:02,944 --> 01:28:03,244 DISSEMINATED? 2452 01:28:03,311 --> 01:28:03,645 THANK YOU. 2453 01:28:03,711 --> 01:28:03,978 >> OKAY. 2454 01:28:04,045 --> 01:28:07,148 SO THE ANSWER TO THE FIRST 2455 01:28:07,215 --> 01:28:10,451 QUESTION IS THAT WE DO -- SO OUR 2456 01:28:10,518 --> 01:28:12,286 PATIENT SATISFACTION DATA COMES 2457 01:28:12,353 --> 01:28:16,557 FROM PRESS GANEY, THE PRESS 2458 01:28:16,624 --> 01:28:17,692 GANEY SURVEY DATA CAN BE SENT 2459 01:28:17,759 --> 01:28:19,961 OUT IN MULTIPLE LANGUAGES AND 2460 01:28:20,028 --> 01:28:20,928 THEN TRANSLATED BACK, AND WHEN 2461 01:28:20,995 --> 01:28:23,331 WE'VE LOOKED AT THE PATIENT 2462 01:28:23,398 --> 01:28:24,899 SATISFACTION SURVEY INFORMATION, 2463 01:28:24,966 --> 01:28:26,601 WE HAVEN'T SEEN SIGNIFICANT 2464 01:28:26,668 --> 01:28:30,438 DIFFERENCES IN SATISFACTION BY 2465 01:28:30,505 --> 01:28:33,875 ETHNICITY OR PREFERRED LANGUAGE. 2466 01:28:33,941 --> 01:28:36,911 AND I'LL DO ANNUAL PRESENTATIONS 2467 01:28:36,978 --> 01:28:38,112 OF THAT DATA. 2468 01:28:38,179 --> 01:28:39,313 IT'S LIMITED, HOWEVER, BECAUSE 2469 01:28:39,380 --> 01:28:43,818 WE DON'T HAVE THE SAME VARIABLES 2470 01:28:43,885 --> 01:28:46,220 DIVIDING OUT THE SURVEY DATA 2471 01:28:46,287 --> 01:28:50,258 THAT WE DO IN OUR EMR. 2472 01:28:50,324 --> 01:28:51,359 AND THEY'RE NOT LINKED SO WE 2473 01:28:51,426 --> 01:28:53,061 DON'T LINK THE SURVEY DATA 2474 01:28:53,127 --> 01:28:54,629 DIRECTLY TO THIS BECAUSE OF HOW 2475 01:28:54,696 --> 01:28:55,930 IT'S IDENTIFIED AND HOW IT'S 2476 01:28:55,997 --> 01:28:58,766 RETURNED BACK TO US. 2477 01:28:58,833 --> 01:29:00,334 I'M NOT SURE HOW EASY THAT WOULD 2478 01:29:00,401 --> 01:29:01,636 BE OR IF IT'S EVEN POSSIBLE 2479 01:29:01,703 --> 01:29:04,072 BECAUSE THE SURVEY DATA COMES 2480 01:29:04,138 --> 01:29:05,273 BACK DE-IDENTIFIED, IT'S 2481 01:29:05,339 --> 01:29:08,009 ANONYMOUS, SO WE TEND NOT TO 2482 01:29:08,076 --> 01:29:09,310 RE-CODE IT BACK. 2483 01:29:09,377 --> 01:29:10,845 WE CAN, AND WE DO WHEN THERE'S A 2484 01:29:10,912 --> 01:29:11,979 SIGNIFICANT SAFETY ISSUE BUT WE 2485 01:29:12,046 --> 01:29:14,882 DON'T OTHERWISE RE-IDENTIFY IT. 2486 01:29:14,949 --> 01:29:17,251 AND THEN THE SECOND QUESTION HAD 2487 01:29:17,318 --> 01:29:19,487 TO DO WITH SIMULTANEOUS 2488 01:29:19,554 --> 01:29:21,255 TRANSLATION. 2489 01:29:21,322 --> 01:29:23,658 THERE ARE A SMALL NUMBER OF OUR 2490 01:29:23,725 --> 01:29:26,060 TRANSLATORS WHO DO SIMULTANEOUS 2491 01:29:26,127 --> 01:29:26,761 TRANSLATION. 2492 01:29:26,828 --> 01:29:28,062 BUT NOT ALL OF THEM. 2493 01:29:28,129 --> 01:29:29,797 AND SO I CAN'T SAY THAT THAT IS 2494 01:29:29,864 --> 01:29:32,734 LIKE A STANDARD THAT WE REQUIRE 2495 01:29:32,800 --> 01:29:33,434 OR EXPECT. 2496 01:29:33,501 --> 01:29:36,070 BUT I HAVE EXPERIENCED IT, IT A 2497 01:29:36,137 --> 01:29:39,440 JOY WHEN YOU DO IT, BUT IT'S NOT 2498 01:29:39,507 --> 01:29:41,476 THE STANDARD. 2499 01:29:41,542 --> 01:29:41,943 >> THANK YOU. 2500 01:29:42,009 --> 01:29:43,111 >> REGINA? 2501 01:29:43,177 --> 01:29:45,680 >> THANK YOU, DR. HADIGAN. 2502 01:29:45,747 --> 01:29:46,814 THAT WAS A FANTASTIC 2503 01:29:46,881 --> 01:29:47,148 PRESENTATION. 2504 01:29:47,215 --> 01:29:48,649 I REALLY, REALLY APPLAUD THE 2505 01:29:48,716 --> 01:29:49,417 WORK. 2506 01:29:49,484 --> 01:29:52,453 MY QUESTION IS ABOUT THE Z CODE. 2507 01:29:52,520 --> 01:29:53,354 I'M NOT FAMILIAR WITH THAT. 2508 01:29:53,421 --> 01:29:55,123 AND I JUST WANT TO MAKE SURE I'M 2509 01:29:55,189 --> 01:29:55,857 UNDERSTANDING WHAT IT IS. 2510 01:29:55,923 --> 01:29:59,360 SO IS IT ESSENTIALLY A PROXY FOR 2511 01:29:59,427 --> 01:30:01,662 LIKE SOCIAL FACTORS THAT MIGHT 2512 01:30:01,729 --> 01:30:03,231 NEGATIVELY INFLUENCE HEALTH 2513 01:30:03,297 --> 01:30:04,766 OUTCOMES IN YOUR POPULATION? 2514 01:30:04,832 --> 01:30:07,468 AND YOU MENTIONED THAT IT WAS 2515 01:30:07,535 --> 01:30:08,870 MANUALLY -- IT HAD BEEN MANUALLY 2516 01:30:08,936 --> 01:30:10,738 EXTRACTED BY CHART REVIEW, IS 2517 01:30:10,805 --> 01:30:11,606 THAT CORRECT? 2518 01:30:11,672 --> 01:30:13,174 >> IT MIGHT BE THROUGH A.I. 2519 01:30:13,241 --> 01:30:15,443 THERE MIGHT BE A FIRST PASS A.I. 2520 01:30:15,510 --> 01:30:16,344 WHERE HEALTH INFORMATION 2521 01:30:16,410 --> 01:30:17,678 MANAGEMENT GROUP IS SEEKING 2522 01:30:17,745 --> 01:30:19,213 CERTAIN TERMS, CERTAIN 2523 01:30:19,280 --> 01:30:19,914 EVALUATIONS. 2524 01:30:19,981 --> 01:30:21,048 OFTEN IT'S THINGS DOCUMENTED IN 2525 01:30:21,115 --> 01:30:25,019 A SOCIAL WORK NOTE. 2526 01:30:25,086 --> 01:30:26,320 AND THEN THEY DO A VERIFICATION 2527 01:30:26,387 --> 01:30:27,722 AND SAY YES, THIS MEETS -- I 2528 01:30:27,789 --> 01:30:29,457 DON'T KNOW WHAT THEIR CRITERIA 2529 01:30:29,524 --> 01:30:31,559 ARE, BUT THEY'LL SAY THERE'S 2530 01:30:31,626 --> 01:30:32,226 SUFFICIENT DOCUMENTATION IN THIS 2531 01:30:32,293 --> 01:30:33,628 CHART TO SAY THAT THIS 2532 01:30:33,694 --> 01:30:35,830 INDIVIDUAL HAS JOB INSECURITY. 2533 01:30:35,897 --> 01:30:36,831 THIS INDIVIDUAL HAS HOUSING 2534 01:30:36,898 --> 01:30:37,398 INSECURITY. 2535 01:30:37,465 --> 01:30:41,202 THIS INDIVIDUAL HAS LITERACY 2536 01:30:41,269 --> 01:30:41,969 ISSUES. 2537 01:30:42,036 --> 01:30:42,837 >> OKAY. 2538 01:30:42,904 --> 01:30:43,838 IT'S FANTASTIC, THANK YOU. 2539 01:30:43,905 --> 01:30:45,139 I JUST WONDERED, YOU KNOW, HOW 2540 01:30:45,206 --> 01:30:45,907 MUCH TIME IT TOOK. 2541 01:30:45,973 --> 01:30:47,875 BUT IF THERE'S AN A.I. 2542 01:30:47,942 --> 01:30:49,710 METHODOLOGY, I'M SURE IT MUCH 2543 01:30:49,777 --> 01:30:51,045 QUICKER THAN, YOU KNOW, HAVING 2544 01:30:51,112 --> 01:30:53,014 PEOPLE DO IT MANUALLY. 2545 01:30:53,080 --> 01:30:54,582 THAT'S VERY, VERY IMPRESSIVE TO 2546 01:30:54,649 --> 01:30:56,851 BE ABLE TO TRY TO QUANTIFY THAT. 2547 01:30:56,918 --> 01:30:58,286 I THINK IT DOES HAVE A HUGE 2548 01:30:58,352 --> 01:31:00,922 IMPACT, BUT IT'S HARD TO REALLY 2549 01:31:00,988 --> 01:31:02,223 UNDERSTAND THAT. 2550 01:31:02,290 --> 01:31:04,859 SO AN APPROACH TO SORT OF 2551 01:31:04,926 --> 01:31:06,494 QUANTIFY IT AND BRING IT INTO 2552 01:31:06,561 --> 01:31:08,129 THE ANALYSIS REALLY MAKES A 2553 01:31:08,196 --> 01:31:08,462 DIFFERENCE. 2554 01:31:08,529 --> 01:31:09,597 IT'S HELPFUL. 2555 01:31:09,664 --> 01:31:10,464 THE SECOND COMMENT I JUST WANTED 2556 01:31:10,531 --> 01:31:12,066 TO MAKE BRIEFLY IS, YOU KNOW, IN 2557 01:31:12,133 --> 01:31:14,502 TERMS OF THE LANGUAGE, THAT WAS 2558 01:31:14,569 --> 01:31:17,271 ALSO AN OUTCOME THAT, WOW, 2559 01:31:17,338 --> 01:31:21,976 THAT'S REALLY TELLING. 2560 01:31:22,043 --> 01:31:23,177 AND REALLY LEADS YOU TO THINK 2561 01:31:23,244 --> 01:31:24,078 ABOUT SOME DIFFERENT WAYS OF 2562 01:31:24,145 --> 01:31:25,413 DOING THINGS. 2563 01:31:25,479 --> 01:31:28,015 WE USE A LANGUAGE INTERPRETATION 2564 01:31:28,082 --> 01:31:29,317 SERVICE, AND I'M NOT ACTUALLY 2565 01:31:29,383 --> 01:31:32,386 FAMILIAR WITH ANY EMPIRICAL 2566 01:31:32,453 --> 01:31:33,387 EVIDENCE ON THE EFFECTIVENESS OF 2567 01:31:33,454 --> 01:31:33,988 THOSE SERVICES. 2568 01:31:34,055 --> 01:31:35,723 I MEAN, YOU HYPOTHESIZE THAT 2569 01:31:35,790 --> 01:31:37,058 THEY ARE GOING TO WORK, BUT 2570 01:31:37,124 --> 01:31:37,892 BECAUSE A LOT OF THE INFORMATION 2571 01:31:37,959 --> 01:31:39,360 THAT IS BEING TRANSLATED IS 2572 01:31:39,427 --> 01:31:43,564 FAIRLY COMPLEX, I DON'T KNOW IF 2573 01:31:43,631 --> 01:31:45,099 THERE'S A LOT OF SUBSTANTIAL 2574 01:31:45,166 --> 01:31:45,867 EVIDENCE ABOUT THE BENEFIT OF 2575 01:31:45,933 --> 01:31:47,802 THOSE SERVICES, SO JUST 2576 01:31:47,869 --> 01:31:49,537 SOMETHING TO THINK ABOUT. 2577 01:31:49,604 --> 01:31:51,005 >> WE ARE ACTIVELY LOOKING AT 2578 01:31:51,072 --> 01:31:52,974 ALL OF THE SERVICES. 2579 01:31:53,040 --> 01:31:57,245 WE HAVE A SIRACOMM PHONE 2580 01:31:57,311 --> 01:31:58,679 TRANSLATION, WE HAVE IN-HOUSE 2581 01:31:58,746 --> 01:32:00,314 TRANSLATION AND ALSO 2582 01:32:00,381 --> 01:32:01,415 COINCIDENTLY OR NOT 2583 01:32:01,482 --> 01:32:03,150 COINCIDENTALLY, YOU MAY BE AWARE 2584 01:32:03,217 --> 01:32:04,318 THAT THE FDA JUST INCREASED 2585 01:32:04,385 --> 01:32:06,988 THEIR GUIDANCE ON REQUIREMENT OF 2586 01:32:07,054 --> 01:32:09,090 TRANSLATION OF RESEARCH CONSENT 2587 01:32:09,156 --> 01:32:11,158 FORMS, SO SIMULTANEOUSLY OUR 2588 01:32:11,225 --> 01:32:13,561 CENTRAL IRB HAS JUST INITIATED A 2589 01:32:13,628 --> 01:32:16,430 POLICY DEMANDING THAT THERE BE 2590 01:32:16,497 --> 01:32:17,665 FULL TRANSLATION OF THE WRITTEN 2591 01:32:17,732 --> 01:32:18,733 CONSENT FORMS AND THAT WE MOVE 2592 01:32:18,799 --> 01:32:19,934 AWAY FROM USING THE SHORT FORM 2593 01:32:20,001 --> 01:32:22,770 WITH AN ORAL TRANSLATION FOR 2594 01:32:22,837 --> 01:32:25,006 THE PURPOSES OF JUST KIND OF 2595 01:32:25,072 --> 01:32:28,409 CLEARER, BETTER ACCESS TO 2596 01:32:28,476 --> 01:32:29,944 NON-ENGLISH INFORMATION THAT IS 2597 01:32:30,011 --> 01:32:34,682 COMPLEX, AS YOU POINT OUT. 2598 01:32:34,749 --> 01:32:35,449 >> JIM? 2599 01:32:35,516 --> 01:32:36,350 DAVID. 2600 01:32:36,417 --> 01:32:39,587 >> THANK YOU, DR. HADIGAN. 2601 01:32:39,654 --> 01:32:40,888 THE INFORMATION WAS EYE OPENING 2602 01:32:40,955 --> 01:32:42,056 IN CERTAIN RESPECTS. 2603 01:32:42,123 --> 01:32:44,425 A COUPLE OF COMMENTS AND A 2604 01:32:44,492 --> 01:32:45,393 QUESTION BOTH FOR YOU AND 2605 01:32:45,459 --> 01:32:48,796 DR. SCHOR. 2606 01:32:48,863 --> 01:32:51,198 BECAUSE YOU'RE LIMITED IN TERMS 2607 01:32:51,265 --> 01:32:54,735 OF THE DATA YOU HAVE OF PEOPLE 2608 01:32:54,802 --> 01:32:56,037 THAT WERE ADMITTED, EVEN THOUGH 2609 01:32:56,103 --> 01:32:57,371 THE CLINICAL CENTER IS INVOLVED 2610 01:32:57,438 --> 01:32:58,839 IN THE PRE-ADMISSION SCREENING 2611 01:32:58,906 --> 01:33:02,410 THAT THE PROTOCOLS DO, DOES 2612 01:33:02,476 --> 01:33:05,246 ANYBODY LOOK AT THESE SAME 2613 01:33:05,313 --> 01:33:08,249 CRITERIA FOR REJECTION FROM THE 2614 01:33:08,316 --> 01:33:10,518 PRE-ADMISSION PROTOCOL SCREENING 2615 01:33:10,584 --> 01:33:12,386 PROCESS? 2616 01:33:12,453 --> 01:33:14,255 SO THAT WE CAN SEE IF THERE IS A 2617 01:33:14,322 --> 01:33:15,456 CORRELATION IN DISPARITY BASED 2618 01:33:15,523 --> 01:33:17,224 ON SOME OF THE SAME FACTORS 2619 01:33:17,291 --> 01:33:20,194 RELATIVE TO THE REJECTION 2620 01:33:20,261 --> 01:33:20,928 PROCESS? 2621 01:33:20,995 --> 01:33:21,529 THAT'S SOMETHING TO CONSIDER. 2622 01:33:21,595 --> 01:33:24,098 I DON'T THINK ANYBODY KNOWS THAT 2623 01:33:24,165 --> 01:33:26,567 NOW. 2624 01:33:26,634 --> 01:33:28,336 THE OTHER THING IS A POINT ABOUT 2625 01:33:28,402 --> 01:33:28,602 LANGUAGE. 2626 01:33:28,669 --> 01:33:29,770 PATIENTS ARE NOW BEING 2627 01:33:29,837 --> 01:33:32,373 ENCOURAGED TO PROVIDE INSURANCE, 2628 01:33:32,440 --> 01:33:34,041 IF YOU ASK WHY YOU NEED 2629 01:33:34,108 --> 01:33:34,942 INSURANCE INFORMATION, YOU'RE 2630 01:33:35,009 --> 01:33:36,444 TOLD SO THAT IN THE EVENT WE 2631 01:33:36,510 --> 01:33:39,313 HAVE TO TRANSFER YOU TO A LOCAL 2632 01:33:39,380 --> 01:33:41,082 HOSPITAL, YOUR CARE WILL GO 2633 01:33:41,148 --> 01:33:43,684 FASTER AND THIS HELPS GET 2634 01:33:43,751 --> 01:33:45,086 PATIENTS MORE MOTIVATED TO 2635 01:33:45,152 --> 01:33:46,187 PROVIDE THE INSURANCE 2636 01:33:46,253 --> 01:33:48,055 INFORMATION SO I WOULD EXPECT TO 2637 01:33:48,122 --> 01:33:51,926 SEE AN UPTICK STARTING THIS YEAR 2638 01:33:51,993 --> 01:33:55,196 AND MOVING FORWARD. 2639 01:33:55,262 --> 01:33:58,132 AND LASTLY, WITH RESPECT TO 2640 01:33:58,199 --> 01:34:00,001 LANGUAGE, AN AREA THAT 2641 01:34:00,067 --> 01:34:01,202 TRANSLATION SERVICES ARE 2642 01:34:01,268 --> 01:34:04,105 IMPORTANT BUT NOT CURRENTLY 2643 01:34:04,171 --> 01:34:07,141 RECOGNIZED IS IN THE CALL CENTER 2644 01:34:07,208 --> 01:34:08,609 THAT JUSTIN'S TEAM OPERATES WITH 2645 01:34:08,676 --> 01:34:10,011 RESPECT TO PEOPLE SEEKING 2646 01:34:10,077 --> 01:34:13,914 INFORMATION ABOUT PROTOCOLS. 2647 01:34:13,981 --> 01:34:15,249 I'VE HAD A NUMBER OF PEOPLE TELL 2648 01:34:15,316 --> 01:34:18,786 ME THAT THEY'VE TRIED TO GET 2649 01:34:18,853 --> 01:34:21,389 INFORMATION AND NOT BEING 2650 01:34:21,455 --> 01:34:22,256 PRINCIPALLY ENGLISH-SPEAKING 2651 01:34:22,323 --> 01:34:24,025 THAT THAT WAS DIFFICULT. 2652 01:34:24,091 --> 01:34:27,094 >> THANK YOU FOR SHARING THAT. 2653 01:34:27,161 --> 01:34:28,763 BEFORE DR. SCHOR IF YOU WANT TO 2654 01:34:28,829 --> 01:34:29,830 ANSWER, I JUST WANT TO MAKE A 2655 01:34:29,897 --> 01:34:31,832 FEW COMMENTS. 2656 01:34:31,899 --> 01:34:32,900 SO LET'S SEE, YOU MENTIONED A 2657 01:34:32,967 --> 01:34:34,668 LOT OF THINGS. 2658 01:34:34,735 --> 01:34:36,837 SO -- THAT'S OKAY. 2659 01:34:36,904 --> 01:34:39,940 WHAT WAS THE FIRST QUESTION? 2660 01:34:40,007 --> 01:34:40,508 PRE-ADMISSION, RIGHT. 2661 01:34:40,574 --> 01:34:41,909 SO I WILL SAY THAT I HAVE 2662 01:34:41,976 --> 01:34:44,445 INTERACTED WITH A FEW NCI 2663 01:34:44,512 --> 01:34:46,180 INVESTIGATORS WHO HAVE 2664 01:34:46,247 --> 01:34:47,381 APPROACHED IT FROM A SLIGHTLY 2665 01:34:47,448 --> 01:34:49,483 DIFFERENT WAY WHICH IS THEY WERE 2666 01:34:49,550 --> 01:34:51,052 LOOKING AT THEIR TRIALS AND 2667 01:34:51,118 --> 01:34:52,987 COMPARING IT TO NATIONAL 2668 01:34:53,054 --> 01:34:54,355 REGISTRY DATA TO SAY -- SO THEY 2669 01:34:54,422 --> 01:34:58,893 COULD SAY OKAY, THIS STAGE IV 2670 01:34:58,959 --> 01:35:00,194 COLON CANCER SHOULD HAVE THIS 2671 01:35:00,261 --> 01:35:02,430 RACIAL DISTRIBUTION IN THE U.S. 2672 01:35:02,496 --> 01:35:05,066 SO OUR ENROLLMENTS FOR STAGE IV 2673 01:35:05,132 --> 01:35:07,034 CANCER TRIALS MATCHING THAT, 2674 01:35:07,101 --> 01:35:09,136 WHICH IS ANOTHER WAY OF KIND OF 2675 01:35:09,203 --> 01:35:09,970 LOOKING WITHOUT KNOWING WHO WAS 2676 01:35:10,037 --> 01:35:13,841 TURNED DOWN, YOU CAN JUST SAY AM 2677 01:35:13,908 --> 01:35:15,276 I -- DO I HAVE A GROUP IN MY 2678 01:35:15,342 --> 01:35:16,377 STUDY THAT REPRESENTS WHAT WE 2679 01:35:16,444 --> 01:35:17,778 KNOW IN THE UNITED STATES SHOULD 2680 01:35:17,845 --> 01:35:19,013 REPRESENT THE DISEASE? 2681 01:35:19,080 --> 01:35:21,849 SO THAT'S ONE WAY OF GETTING AT 2682 01:35:21,916 --> 01:35:23,284 THE KIND OF ISSUE OF WHO DOESN'T 2683 01:35:23,350 --> 01:35:23,818 MAKE IT IN. 2684 01:35:23,884 --> 01:35:25,286 AND I'M GRATEFUL THAT THEY'RE 2685 01:35:25,352 --> 01:35:26,020 LOOKING AT IT AND DOING THAT 2686 01:35:26,087 --> 01:35:27,354 TYPE OF WORK. 2687 01:35:27,421 --> 01:35:32,927 AND THEN THE SECOND COMMENT WA 2688 01:35:32,993 --> 01:35:34,795 WAS -- OH, THE INSURANCE. 2689 01:35:34,862 --> 01:35:38,165 I ACTUALLY BELIEVE THAT THE BIAS 2690 01:35:38,232 --> 01:35:39,600 TO COLLECT THE INSURANCE WHEN 2691 01:35:39,667 --> 01:35:41,368 SOMEONE EITHER GETS ADMITTED TO 2692 01:35:41,435 --> 01:35:43,270 THE ICU OR IS ESCALATING IN CARE 2693 01:35:43,337 --> 01:35:44,371 MAY ALREADY HAVE ATTRIBUTED TO 2694 01:35:44,438 --> 01:35:46,440 SOME OF THAT DATA. 2695 01:35:46,507 --> 01:35:47,441 SO IN OTHER WORDS, THAT WE HAVE 2696 01:35:47,508 --> 01:35:49,610 A BIAS TO GETTING THE INSURANCE 2697 01:35:49,677 --> 01:35:50,578 INFORMATION FOR OUR SICKER 2698 01:35:50,644 --> 01:35:51,679 PATIENTS IN CASE WE'RE 2699 01:35:51,745 --> 01:35:52,913 ANTICIPATING A TRANSFER TO 2700 01:35:52,980 --> 01:35:53,447 ANOTHER HOSPITAL. 2701 01:35:53,514 --> 01:35:56,617 SO THAT MAY BE WHY THE UNPLANNED 2702 01:35:56,684 --> 01:35:57,818 ICU ADMISSION HAD A HIGHER RATE 2703 01:35:57,885 --> 01:35:59,386 OF BEING INSURED BECAUSE 2704 01:35:59,453 --> 01:36:00,354 SOMEBODY MAYBE WORKED A LITTLE 2705 01:36:00,421 --> 01:36:01,555 HARDER TO GET THE DATA. 2706 01:36:01,622 --> 01:36:04,525 OF SO -- BUT YOU CAUGHT THAT BY 2707 01:36:04,592 --> 01:36:05,993 KNOWING HOW WE COLLECT THE 2708 01:36:06,060 --> 01:36:11,732 INFORMATION AND WHEN. 2709 01:36:11,799 --> 01:36:12,333 DR. SCHOR? 2710 01:36:12,399 --> 01:36:14,602 >> ACTUALLY THERE ARE A COUPLE 2711 01:36:14,668 --> 01:36:17,138 OF OTHER -- I SEE MANY OF THESE 2712 01:36:17,204 --> 01:36:19,907 THINGS AT THE LEVEL OF THE IRB 2713 01:36:19,974 --> 01:36:23,377 REVIEW BEFORE THEY EVEN MAKE TO 2714 01:36:23,444 --> 01:36:25,479 BEING A PROTOCOL IN THE 2715 01:36:25,546 --> 01:36:25,913 HOSPITAL. 2716 01:36:25,980 --> 01:36:29,216 AND I THINK OUR IRB IS VERY, 2717 01:36:29,283 --> 01:36:32,153 VERY MUCH SENSITIZED TO THE 2718 01:36:32,219 --> 01:36:34,522 POTENTIAL FOR EXCLUSION CRITERIA 2719 01:36:34,588 --> 01:36:39,393 FROM A STUDY TO SELECT FOR A 2720 01:36:39,460 --> 01:36:41,562 PARTICULAR POPULATION, AND I 2721 01:36:41,629 --> 01:36:45,900 FEEL VERY CONFIDENT THAT 2722 01:36:45,966 --> 01:36:46,767 PROTOCOLS THAT DO THAT WITHOUT 2723 01:36:46,834 --> 01:36:48,302 EVEN REALIZING IT BECAUSE THEY 2724 01:36:48,369 --> 01:36:52,673 HAVE CERTAIN REQUIREMENTS AND 2725 01:36:52,740 --> 01:36:55,509 POPULATIONS FOR WHATEVER 2726 01:36:55,576 --> 01:36:58,612 SOCIOECONOMIC REASON CAN'T MEET 2727 01:36:58,679 --> 01:36:59,813 THOSE REQUIREMENTS THAT 2728 01:36:59,880 --> 01:37:01,882 INVESTIGATORS GET CALLED ON 2729 01:37:01,949 --> 01:37:05,152 THOSE AND HAVE TO MODIFY THE 2730 01:37:05,219 --> 01:37:09,123 PROTOCOL BEFORE IT GETS 2731 01:37:09,190 --> 01:37:09,456 INITIATED. 2732 01:37:09,523 --> 01:37:11,759 THE OTHER THING I WANT TO 2733 01:37:11,825 --> 01:37:13,727 MENTION WHICH WE'VE MADE GREAT 2734 01:37:13,794 --> 01:37:15,362 HEADWAY ON BUT IT ALMOST 2735 01:37:15,429 --> 01:37:18,666 EMBARRASSES ME THAT IT TOOK 2736 01:37:18,732 --> 01:37:20,434 UNTIL NOW FOR US TO 2737 01:37:20,501 --> 01:37:22,303 SYSTEMATICALLY APPROACH THIS IS 2738 01:37:22,369 --> 01:37:26,006 THE PROVISION TO PATIENTS AND 2739 01:37:26,073 --> 01:37:27,875 FAMILIES OF CONSENT FORMS IN 2740 01:37:27,942 --> 01:37:30,411 THEIR NATIVE LANGUAGE. 2741 01:37:30,477 --> 01:37:33,447 SOME OF OUR PROTOCOLS ARE 2742 01:37:33,514 --> 01:37:34,548 SUFFICIENTLY COMPLEX THAT EVEN 2743 01:37:34,615 --> 01:37:36,650 WHEN THEY'RE PROVIDED IN THEIR 2744 01:37:36,717 --> 01:37:39,720 NATIVE LANGUAGE, YOU KNOW, 2745 01:37:39,787 --> 01:37:40,955 CONSENTING DOESN'T JUST INVOLVE 2746 01:37:41,021 --> 01:37:42,189 GIVING THEM A DOCUMENT. 2747 01:37:42,256 --> 01:37:45,125 IT INVOLVED A RELATIONSHIP AND A 2748 01:37:45,192 --> 01:37:46,994 CONVERSATION AND AN ONGOING 2749 01:37:47,061 --> 01:37:50,364 ABILITY TO ASK QUESTIONS AND 2750 01:37:50,431 --> 01:37:52,967 MODIFY PARTICIPATION. 2751 01:37:53,033 --> 01:38:00,241 AND WE'VE NOW MANDATED THAT 2752 01:38:00,307 --> 01:38:01,909 CONSENT FORMS -- AND ACTUALLY 2753 01:38:01,976 --> 01:38:08,115 THE NIH LIBRARY HAS BEEN 2754 01:38:08,182 --> 01:38:09,216 WONDERFUL IN PROVIDING SERVICES 2755 01:38:09,283 --> 01:38:10,718 AND MAKING THEM AVAILABLE TO OUR 2756 01:38:10,784 --> 01:38:11,418 INVESTIGATORS. 2757 01:38:11,485 --> 01:38:14,822 BUT WE HAVE MANDATED THAT IF A 2758 01:38:14,888 --> 01:38:16,523 PATIENT'S NATIVE LANGUAGE IS NOT 2759 01:38:16,590 --> 01:38:17,625 ENGLISH, THAT THEY BE OFFERED 2760 01:38:17,691 --> 01:38:19,927 THE OPPORTUNITY TO HAVE A 2761 01:38:19,994 --> 01:38:21,929 CONSENT FORM PROVIDED IN THEIR 2762 01:38:21,996 --> 01:38:23,697 NATIVE LANGUAGE. 2763 01:38:23,764 --> 01:38:24,965 AND I DON'T KNOW, THERE'S A LOT 2764 01:38:25,032 --> 01:38:27,401 OF TALK ABOUT WHETHER A.I. IS 2765 01:38:27,468 --> 01:38:31,138 GOING TO HELP US WITH THAT. 2766 01:38:31,205 --> 01:38:33,540 I HAVE -- I DON'T KNOW, I THINK 2767 01:38:33,607 --> 01:38:36,076 A HEALTHY BRAND OF SKEPTICISM AS 2768 01:38:36,143 --> 01:38:44,251 TO WHETHER I WANT A CONFABULATED 2769 01:38:44,318 --> 01:38:45,719 CONSENT FORM FOR MY PATIENTS. 2770 01:38:45,786 --> 01:38:47,254 >> MOVING TO THE ELECTRONIC 2771 01:38:47,321 --> 01:38:48,489 CONSENT FORMS, WHICH I BELIEVE 2772 01:38:48,555 --> 01:38:49,356 THE CLINICAL CENTER IS DOING 2773 01:38:49,423 --> 01:38:51,258 NOW, IT SHOULD MAKE THAT EASIER. 2774 01:38:51,325 --> 01:38:56,196 >> YES, I THINK THAT'S CORRECT. 2775 01:38:56,263 --> 01:38:57,531 >> TONI? 2776 01:38:57,598 --> 01:38:59,900 >> HI, DR. HADIGAN. 2777 01:38:59,967 --> 01:39:01,101 >> HI. 2778 01:39:01,168 --> 01:39:04,204 >> ARE THERE ANY SITUATIONS 2779 01:39:04,271 --> 01:39:09,543 WHEREBY YOU ALL RUN INTO 2780 01:39:09,610 --> 01:39:10,644 PATIENTS WHOSE LANGUAGE, WHEN 2781 01:39:10,711 --> 01:39:13,614 THEY DO COME TO THE CLINICAL 2782 01:39:13,681 --> 01:39:17,418 CENTER, YOU CANNOT FIND A PROPER 2783 01:39:17,484 --> 01:39:19,920 PERSON TO DO THE TRANSLATING FOR 2784 01:39:19,987 --> 01:39:22,256 THEM? 2785 01:39:22,323 --> 01:39:24,692 >> THAT'S AN EXCELLENT QUESTION, 2786 01:39:24,758 --> 01:39:28,195 AND UNFORTUNA UNFORTUNATE I'M AT 2787 01:39:28,262 --> 01:39:29,596 LEAST A FEW INSTANCES WHERE 2788 01:39:29,663 --> 01:39:31,565 PRIOR TO BRINGING A PATIENT ON 2789 01:39:31,632 --> 01:39:34,134 TO A PROTOCOL, SO AN INDIVIDUAL 2790 01:39:34,201 --> 01:39:35,736 WITH A RARE DISEASE WHO LIVED IN 2791 01:39:35,803 --> 01:39:38,205 A REMOTE AREA WITH A UNIQUE 2792 01:39:38,272 --> 01:39:39,740 DIALECT, AND WE ACTUALLY MADE 2793 01:39:39,807 --> 01:39:43,310 THE RECOMMENDATION THAT THE 2794 01:39:43,377 --> 01:39:44,244 PATIENT NOT BE BROUGHT TO THE 2795 01:39:44,311 --> 01:39:45,179 CLINICAL CENTER BECAUSE WE WOULD 2796 01:39:45,245 --> 01:39:47,948 BE UNABLE TO PROVIDE TRANSLATION 2797 01:39:48,015 --> 01:39:50,951 SERVICES CONSISTENTLY IN ORDER 2798 01:39:51,018 --> 01:39:52,486 TO SUPPORT THE CARE, THIS WAS 2799 01:39:52,553 --> 01:39:53,520 PARTICULARLY SOMEONE FOR LIKE A 2800 01:39:53,587 --> 01:39:54,855 BONE MARROW STEM CELL TRANSPLANT 2801 01:39:54,922 --> 01:39:56,957 WITH A PRIMARY IMMUNODEFICIENCY, 2802 01:39:57,024 --> 01:39:58,258 AND THE CONCERN WAS THAT WE 2803 01:39:58,325 --> 01:40:00,594 WOULD BE UNABLE TO PROVIDE 2804 01:40:00,661 --> 01:40:03,864 THEM CARE AND SUFFICIENT SUPPORT 2805 01:40:03,931 --> 01:40:04,965 WITH TRANSLATION SERVICES 2806 01:40:05,032 --> 01:40:06,767 BECAUSE THERE WAS JUST NO 2807 01:40:06,834 --> 01:40:08,635 ABILITY WITHIN THE SERVICES THAT 2808 01:40:08,702 --> 01:40:11,472 WE HAVE UNDER OUR -- AND THAT'S 2809 01:40:11,538 --> 01:40:12,706 PRETTY -- THAT'S TELLING, RIGHT, 2810 01:40:12,773 --> 01:40:14,475 BECAUSE WE'RE IN THE D.C. AREA 2811 01:40:14,541 --> 01:40:16,777 AND WE HAVE A LOT OF ACCESS TO 2812 01:40:16,844 --> 01:40:19,947 LANGUAGES OF LESSER DIFFUSION, 2813 01:40:20,013 --> 01:40:23,050 SO WE HAVE LIKE 27 LANGUAGES OR 2814 01:40:23,117 --> 01:40:24,518 MORE, 30, THAT WE CAN SUPPORT, 2815 01:40:24,585 --> 01:40:25,919 BUT THERE ARE DIALECTS THAT WE 2816 01:40:25,986 --> 01:40:26,453 CAN'T SUPPORT. 2817 01:40:26,520 --> 01:40:27,588 SO THERE ARE TIMES THAT I'M 2818 01:40:27,654 --> 01:40:29,022 AWARE OF THAT AND THERE ARE 2819 01:40:29,089 --> 01:40:30,891 OTHER TIMES WHERE THERE IS 2820 01:40:30,958 --> 01:40:32,893 AVAILABILITY BUT IT'S LIMITED, 2821 01:40:32,960 --> 01:40:35,763 AND THAT, I THINK BECOMES A 2822 01:40:35,829 --> 01:40:37,297 VULNERABILITY BECAUSE YOU HAVE 2823 01:40:37,364 --> 01:40:39,833 TO DO MORE STRATEGIC PLANNING TO 2824 01:40:39,900 --> 01:40:42,536 HAVE THE TRANSLATORS AVAILABLE, 2825 01:40:42,603 --> 01:40:48,275 THE SIRACOM MAKES UP THE 2826 01:40:48,342 --> 01:40:48,842 DIFFERENCE WHEN INDIVIDUAL 2827 01:40:48,909 --> 01:40:49,843 PEOPLE CAN'T BE IN, BUT THERE 2828 01:40:49,910 --> 01:40:54,982 ARE SITUATIONS IN CLINICAL CARE 2829 01:40:55,048 --> 01:40:56,417 WHERE WE NEED THE TRANSLATOR 2830 01:40:56,483 --> 01:40:57,251 PRESENT, LIKE WHEN A PATIENT IS 2831 01:40:57,317 --> 01:40:59,386 IN AN MR SCANNER AND WE NEED TO 2832 01:40:59,453 --> 01:41:00,220 BE COMMUNICATING WITH THEM 2833 01:41:00,287 --> 01:41:02,723 THROUGH THE TECHNICIAN SO WE IB 2834 01:41:02,790 --> 01:41:05,259 CYST IT NOT BE BY PHONE BUT IN 2835 01:41:05,325 --> 01:41:07,027 PERSON, SO WE STILL HAVE 2836 01:41:07,094 --> 01:41:07,928 CHALLENGES AND I'M AWARE OF A 2837 01:41:07,995 --> 01:41:09,263 FEW INSTANCES WHERE WE'VE HAD TO 2838 01:41:09,329 --> 01:41:10,864 RECOMMEND THAT A PATIENT NOT 2839 01:41:10,931 --> 01:41:12,232 COME BECAUSE WE COULDN'T PROVIDE 2840 01:41:12,299 --> 01:41:14,435 THAT SERVICE. 2841 01:41:14,501 --> 01:41:18,172 >> SO WHEN Y'ALL SAY LANGUAGE 2842 01:41:18,238 --> 01:41:19,773 INTERPRETATION SERVICES, DO YOU 2843 01:41:19,840 --> 01:41:21,575 MEAN PICK UP A PHONE AND Y'ALL 2844 01:41:21,642 --> 01:41:23,110 DO THE TRANSLATING THAT WAY OR 2845 01:41:23,177 --> 01:41:24,978 YOU MEAN LIKE IN PERSON? 2846 01:41:25,045 --> 01:41:30,717 >> SO WE HAVE ALL VERSIONS. 2847 01:41:30,784 --> 01:41:32,286 SO WE HAVE IN-PERSON 2848 01:41:32,352 --> 01:41:33,921 TRANSLATORS, WE HAVE ABILITY TO 2849 01:41:33,987 --> 01:41:37,357 USE A PHONE SERVICE, AND KIND OF 2850 01:41:37,424 --> 01:41:39,226 DEPENDING ON THE TIME OF DAY AND 2851 01:41:39,293 --> 01:41:42,496 THE PLANNING, WHICH ONES WE USE, 2852 01:41:42,563 --> 01:41:45,365 BUT IT BOTH. 2853 01:41:45,432 --> 01:41:45,666 IT'S BOTH. 2854 01:41:45,732 --> 01:41:53,474 >> THANK YOU. 2855 01:41:53,540 --> 01:41:55,342 I DID WANT TO BRING UP A.I. BUT 2856 01:41:55,409 --> 01:41:57,611 THAT'S ONE OF THOSE CURSE WORDS, 2857 01:41:57,678 --> 01:42:00,481 BUT TWO PEOPLE ALREADY SAID IT 2858 01:42:00,547 --> 01:42:02,783 SO -- A.I. 2859 01:42:02,850 --> 01:42:04,885 >> SO MY WAY OF MAKING MYSELF 2860 01:42:04,952 --> 01:42:06,620 FEEL BETTER ABOUT THAT IS THAT 2861 01:42:06,687 --> 01:42:09,022 COMPUTERS HELP US ALL THE TIME 2862 01:42:09,089 --> 01:42:10,924 AND HAVE BEEN HELPING US, AND 2863 01:42:10,991 --> 01:42:12,392 A.I. IS JUST ANOTHER WAY THAT 2864 01:42:12,459 --> 01:42:13,760 COMPUTERS ARE HELPING US. 2865 01:42:13,827 --> 01:42:18,699 IT MAKES IT LESS SCARY. 2866 01:42:18,765 --> 01:42:19,366 >> OKAY. 2867 01:42:19,433 --> 01:42:20,601 THANK YOU VERY MUCH, 2868 01:42:20,667 --> 01:42:21,134 DR. HADIGAN. 2869 01:42:21,201 --> 01:42:25,072 REALLY APPRECIATE THAT. 2870 01:42:25,138 --> 01:42:28,308 OUR NEXT PRESENTATION IS THE 2871 01:42:28,375 --> 01:42:29,543 CLINICAL CENTER PEDIATRIC 2872 01:42:29,610 --> 01:42:31,178 STRATEGIC PLAN WORKING GROUP 2873 01:42:31,245 --> 01:42:31,411 REPORT. 2874 01:42:31,478 --> 01:42:34,314 SO WE HAVE DR. DIANA BIANCHI, 2875 01:42:34,381 --> 01:42:37,484 WHO'S JOINING US BY ZOOM, AND 2876 01:42:37,551 --> 01:42:38,585 DR. BRIGITTE WIDEMANN, WHO'S 2877 01:42:38,652 --> 01:42:41,555 HERE IN THE ROOM WITH US. 2878 01:42:41,622 --> 01:42:43,323 DR. DIANA BIANCHI IS THE 2879 01:42:43,390 --> 01:42:44,791 DIRECTOR OF THE EUNICE KENNEDY 2880 01:42:44,858 --> 01:42:45,559 SHRIVER NATIONAL INSTITUTE ON 2881 01:42:45,626 --> 01:42:46,960 CHILD HEALTH AND HUMAN 2882 01:42:47,027 --> 01:42:48,028 DEVELOPMENT, A POSITION SHE HAS 2883 01:42:48,095 --> 01:42:49,463 HELD SINCE 2016. 2884 01:42:49,530 --> 01:42:52,466 SHE'S WIDELY RECOGNIZED FOR HER 2885 01:42:52,533 --> 01:42:53,901 ACCOMPLISHMENTS AND A PRENATAL 2886 01:42:53,967 --> 01:42:55,402 GENETICIST AND WE WELCOME HER ON 2887 01:42:55,469 --> 01:42:58,405 ZOOM AS A CO-PRESENTER WITH 2888 01:42:58,472 --> 01:42:58,839 DR. WIDEMANN. 2889 01:42:58,906 --> 01:43:00,807 TO DISCUSS THE CLINICAL CENTER 2890 01:43:00,874 --> 01:43:02,042 PEDIATRIC STRATEGIC PLAN WORKING 2891 01:43:02,109 --> 01:43:04,177 GROUP'S REPORT. 2892 01:43:04,244 --> 01:43:05,445 DR. BRIGITTE WIDEMANN IS THE 2893 01:43:05,512 --> 01:43:08,115 CHIEF CENTER FOR CANCER RESEARCH 2894 01:43:08,181 --> 01:43:09,383 PEDIATRIC ONCOLOGY BRANCH AND 2895 01:43:09,449 --> 01:43:10,551 SPECIAL ADVISER SO THE NCI 2896 01:43:10,617 --> 01:43:12,986 DIRECTOR FOR CHILDHOOD CANCER AT 2897 01:43:13,053 --> 01:43:14,788 THE NATIONAL CANCER INSTITUTE. 2898 01:43:14,855 --> 01:43:16,790 BRIGITTE IS A WELL-KNOWN 2899 01:43:16,857 --> 01:43:17,758 PEDIATRIC ONCOLOGIST WITH A 2900 01:43:17,824 --> 01:43:19,860 PRIMARY INTEREST IN DEVELOPING 2901 01:43:19,927 --> 01:43:21,929 EFFECTIVE THERAPIES FOR CHILDREN 2902 01:43:21,995 --> 01:43:25,032 AND ADULTS WITH GENETIC TEU 2903 01:43:25,098 --> 01:43:27,634 PREDISPOSITION SYNDROME SUCH AS 2904 01:43:27,701 --> 01:43:28,535 NEUROFIBROMATOSIS TYPE 1 AND 2905 01:43:28,602 --> 01:43:29,436 RARE SOLID TUMOR. 2906 01:43:29,503 --> 01:43:30,971 SO WE LOOK FORWARD TO THIS 2907 01:43:31,038 --> 01:43:32,239 REPORT AS OUR BOARD HAS BEEN 2908 01:43:32,306 --> 01:43:35,008 STRONGLY ENGAGED IN DIALOGUE ON 2909 01:43:35,075 --> 01:43:36,944 PEDIATRIC CARE AND PEDIATRIC 2910 01:43:37,010 --> 01:43:38,245 RESOURCES AT THE CLINICAL 2911 01:43:38,312 --> 01:43:40,781 CENTER, SO WELCOME TO YOU BOTH. 2912 01:43:40,847 --> 01:43:42,382 >> THANK YOU VERY MUCH. 2913 01:43:42,449 --> 01:43:44,051 IT'S A GREAT PLEASURE TO BE WITH 2914 01:43:44,117 --> 01:43:46,887 YOU ALL TODAY, AND TO PRESENT 2915 01:43:46,954 --> 01:43:49,022 THE WORK REALLY OF THE PATH TWO 2916 01:43:49,089 --> 01:43:49,222 YEARS. 2917 01:43:49,289 --> 01:43:50,424 SO IF I COULD HAVE THE NEXT 2918 01:43:50,490 --> 01:43:54,828 SLIDE, PLEASE. 2919 01:43:54,895 --> 01:43:57,998 THIS IS REALLY THE WORK OF MANY 2920 01:43:58,065 --> 01:43:58,465 PEOPLE. 2921 01:43:58,532 --> 01:44:01,401 WE CREATED A WORKING GROUP THAT 2922 01:44:01,468 --> 01:44:03,236 WOULD REPRESENT THE INSTITUTES 2923 01:44:03,303 --> 01:44:05,706 THAT HAVE THE LARGEST NUMBER OF 2924 01:44:05,772 --> 01:44:08,208 CHILDREN WHO ARE BEING TREATED 2925 01:44:08,275 --> 01:44:09,443 IN THE CLINICAL CENTER. 2926 01:44:09,509 --> 01:44:10,978 WE WANTED TO GET A WIDE VARIETY 2927 01:44:11,044 --> 01:44:19,486 OF PERSPECTIVES, AND WE HAD 2928 01:44:19,553 --> 01:44:20,554 DR. TUCCI, DIRECTOR OF THE 2929 01:44:20,621 --> 01:44:21,788 NATIONAL INSTITUTE OF DEAFNESS 2930 01:44:21,855 --> 01:44:22,756 AND COMMUNICATION DISORDERS AS 2931 01:44:22,823 --> 01:44:24,625 WELL AS DR. GILMAN 2932 01:44:24,691 --> 01:44:25,092 PARTICIPATING. 2933 01:44:25,158 --> 01:44:26,927 AND I HAVE TO SAY, THIS WAS A 2934 01:44:26,994 --> 01:44:28,695 VERY ENGAGED GROUP. 2935 01:44:28,762 --> 01:44:32,132 WE HAD MANY MEETINGS. 2936 01:44:32,199 --> 01:44:34,201 NO ONE WAS SHY IN TERMS OF 2937 01:44:34,267 --> 01:44:38,138 COMMUNICATING THEIR OPINIONS. 2938 01:44:38,205 --> 01:44:40,240 SO WE THANK THEM FOR THEIR INPUT 2939 01:44:40,307 --> 01:44:43,810 AND PARTICIPATION. 2940 01:44:43,877 --> 01:44:45,512 NOW OUR GROUP WAS DIFFERENT. 2941 01:44:45,579 --> 01:44:47,381 I KNOW THAT YOU'VE PREVIOUSLY 2942 01:44:47,447 --> 01:44:49,683 HEARD FROM DR. GALL'S GROUP, 2943 01:44:49,750 --> 01:44:53,720 WHICH MAINLY WAS FOCUSED ON 2944 01:44:53,787 --> 01:44:55,856 SAFETY AND THE NEED FOR 2945 01:44:55,922 --> 01:44:57,157 SUBSPECIALISTS, PEDIATRIC 2946 01:44:57,224 --> 01:44:58,058 SUBSPECIALISTS IN THE CLINICAL 2947 01:44:58,125 --> 01:45:00,093 CENTER. 2948 01:45:00,160 --> 01:45:01,795 OUR GROUP WAS MUCH MORE OF A 2949 01:45:01,862 --> 01:45:04,731 BLUE SKY GROUP, REALLY NOT 2950 01:45:04,798 --> 01:45:08,902 THINKING NICHE LITTLE ABOUT 2951 01:45:08,969 --> 01:45:12,339 COSTS OR PRACTICAL ISSUES BUT 2952 01:45:12,406 --> 01:45:13,740 REALLY THINKING ABOUT THE 2953 01:45:13,807 --> 01:45:14,074 SCIENCE. 2954 01:45:14,141 --> 01:45:16,043 SO OUR WORKING GROUP CHARGE IS 2955 01:45:16,109 --> 01:45:18,011 STATED HERE, AND THAT WAS TO 2956 01:45:18,078 --> 01:45:20,180 IDENTIFY THE MOST IMPACTFUL 2957 01:45:20,247 --> 01:45:22,883 SCIENTIFIC AREAS OF PEDIATRIC 2958 01:45:22,949 --> 01:45:24,851 RESEARCH, IN WHICH THE NIH CAN 2959 01:45:24,918 --> 01:45:27,554 PLAY A MAJOR ROLE TO 2960 01:45:27,621 --> 01:45:29,289 SUBSTANTIALLY IMPROVE CHILD 2961 01:45:29,356 --> 01:45:29,589 HEALTH. 2962 01:45:29,656 --> 01:45:30,824 WE REALLY WANTED TO THINK ABOUT 2963 01:45:30,891 --> 01:45:32,859 THE NIH AS A HOUSE OF HOPE FOR 2964 01:45:32,926 --> 01:45:35,128 PEOPLE OF ALL AGES. 2965 01:45:35,195 --> 01:45:37,764 AND SO USING THIS HORIZON 2966 01:45:37,831 --> 01:45:40,634 SCANNING TO PERFORM LONG TERM 2967 01:45:40,701 --> 01:45:43,170 STRATEGIC PLANNING FOR 2968 01:45:43,236 --> 01:45:44,571 INTRAMURAL, TRANS-NIH CLINICAL 2969 01:45:44,638 --> 01:45:46,206 PEDIATRIC RESEARCH TO OCCUR OVER 2970 01:45:46,273 --> 01:45:48,475 THE NEXT DECADE AND BEYOND, AND 2971 01:45:48,542 --> 01:45:50,544 WE FELT THAT CHILDREN WERE GOING 2972 01:45:50,610 --> 01:45:53,113 TO BE THE BENEFICIARIES OF A LOT 2973 01:45:53,180 --> 01:45:58,885 OF THE NEWEST TECHNOLOGIES. 2974 01:45:58,952 --> 01:46:01,655 NOW, YOU PROBABLY KNOW THAT 2975 01:46:01,722 --> 01:46:05,459 CHILDREN UNDER AGE 3 ARE NOT 2976 01:46:05,525 --> 01:46:08,729 GENERALLY ON INPATIENT WARDS IN 2977 01:46:08,795 --> 01:46:09,629 THE CLINICAL CENTER, AND WE 2978 01:46:09,696 --> 01:46:10,964 COULD CERTAINLY ELABORATE THAT 2979 01:46:11,031 --> 01:46:14,701 WITH QUESTIONS LATER ON. 2980 01:46:14,768 --> 01:46:16,403 AFTER TWO YEARS OF MEETING, THE 2981 01:46:16,470 --> 01:46:18,038 WORKING GROUP CAME UP WITH THE 2982 01:46:18,105 --> 01:46:19,573 FOLLOWING SCIENTIFIC PRIORITIES. 2983 01:46:19,639 --> 01:46:22,709 AGAIN, WE WERE NOT LIMITED 2984 01:46:22,776 --> 01:46:24,411 INITIALLY ABOUT THINKING WHAT IS 2985 01:46:24,478 --> 01:46:27,180 THIS GOING TO COST, IS THIS 2986 01:46:27,247 --> 01:46:28,281 PRACTICAL, IS THIS FEASIBLE. 2987 01:46:28,348 --> 01:46:30,217 SO THIS IS WHAT THE GROUP 2988 01:46:30,283 --> 01:46:31,785 THOUGHT WAS THE MOST IMPORTANT 2989 01:46:31,852 --> 01:46:32,853 SCIENCE. 2990 01:46:32,919 --> 01:46:35,522 SO THE FIRST THING WAS EXPANDING 2991 01:46:35,589 --> 01:46:37,591 THE SCOPE OF NATURAL HISTORY 2992 01:46:37,657 --> 01:46:39,159 STUDIES TO SUPPORT RESEARCH ON 2993 01:46:39,226 --> 01:46:41,161 THE CONTINUUM FROM DIAGNOSIS TO 2994 01:46:41,228 --> 01:46:42,662 TREATMENT THROUGHOUT DISEASE 2995 01:46:42,729 --> 01:46:45,298 TRAJECTORY. 2996 01:46:45,365 --> 01:46:47,534 AND THEN BUILDING A FOUNDATIONAL 2997 01:46:47,601 --> 01:46:50,203 CLINICAL AND SCIENTIFIC 2998 01:46:50,270 --> 01:46:53,006 INFRASTRUCTURE TO SUPPORT GENE 2999 01:46:53,073 --> 01:46:57,210 THERAPY, CAR-T AND OTHER CELL 3000 01:46:57,277 --> 01:46:58,712 AND PRECISION THERAPY STUDIES IN 3001 01:46:58,779 --> 01:47:01,381 YOUNG CHILDREN WITH INHERITED OR 3002 01:47:01,448 --> 01:47:02,849 ACQUIRED RARE, SERIOUS AND 3003 01:47:02,916 --> 01:47:04,151 REFRACTORY DISEASES OF UNMET 3004 01:47:04,217 --> 01:47:05,452 NEED. 3005 01:47:05,519 --> 01:47:07,487 WE ALSO WANTED TO EVALUATE THE 3006 01:47:07,554 --> 01:47:09,990 EFFICIENCY OF PRECISION MEDICINE 3007 01:47:10,056 --> 01:47:11,725 INTERVENTIONS IN RARE, 3008 01:47:11,792 --> 01:47:13,827 NON-MALIGNANT CHILDHOOD 3009 01:47:13,894 --> 01:47:15,262 DISEASES, AND THEN INCREASING 3010 01:47:15,328 --> 01:47:18,565 THE NUMBER OF PHARMACOKINETIC 3011 01:47:18,632 --> 01:47:20,867 AND PHARMACODYNAMIC STUDIES TO 3012 01:47:20,934 --> 01:47:22,536 IMPROVE RATIONAL MEDICATION USE 3013 01:47:22,602 --> 01:47:25,071 AND PROPER DOSING IN CHILDREN. 3014 01:47:25,138 --> 01:47:27,808 BECAUSE WE DON'T HAVE EVIDENCE 3015 01:47:27,874 --> 01:47:29,409 FOR MANY MEDICATIONS THAT ARE 3016 01:47:29,476 --> 01:47:30,610 GIVEN TO CHILDREN AND WE KNOW 3017 01:47:30,677 --> 01:47:32,279 THAT CHILDREN ARE NOT LITTLE 3018 01:47:32,345 --> 01:47:37,584 ADULTS. 3019 01:47:37,651 --> 01:47:38,819 SO THE REMAINING PRIORITIES ARE 3020 01:47:38,885 --> 01:47:41,688 THE FOLLOWING: PERFORMING MED 3021 01:47:41,755 --> 01:47:46,626 BMETABOLIC PHENOTYPING ACROSS A 3022 01:47:46,693 --> 01:47:48,028 VARIETY OF PEDIATRIC CONDITIONS, 3023 01:47:48,094 --> 01:47:50,363 AS WELL AS LINKING METABOLIC 3024 01:47:50,430 --> 01:47:52,065 PHENOTYPING ON NUTRITION STUDIES 3025 01:47:52,132 --> 01:47:54,034 AND ASSESSING THE IMPACT OF DIET 3026 01:47:54,100 --> 01:47:55,969 ON IMMUNE PHENOTYPES AND 3027 01:47:56,036 --> 01:47:57,070 METABOLISM. 3028 01:47:57,137 --> 01:47:58,672 AND THEN DEVELOPING A COHORT OF 3029 01:47:58,738 --> 01:48:01,174 ALL PEDIATRIC PATIENTS AT THE 3030 01:48:01,241 --> 01:48:02,609 CLINICAL CENTER TO MEASURE 3031 01:48:02,676 --> 01:48:05,212 PHYSICAL AND MENTAL HEALTH AND 3032 01:48:05,278 --> 01:48:07,314 DISEASE ACROSS DISORDERS, ALONG 3033 01:48:07,380 --> 01:48:09,115 WITH A DEEPLY PHENOTYPED 3034 01:48:09,182 --> 01:48:11,618 PEDIATRIC COHORT OF HEALTHY 3035 01:48:11,685 --> 01:48:12,619 VOLUNTEER CHILDREN TO ESTABLISH 3036 01:48:12,686 --> 01:48:14,054 A STANDARD CONTROL GROUP THAT 3037 01:48:14,120 --> 01:48:17,490 CAN BE USED ACROSS STUDIES. 3038 01:48:17,557 --> 01:48:20,994 AND THEN LASTLY, BECAUSE THERE 3039 01:48:21,061 --> 01:48:22,562 ARE EVEN FEWER PREGNANT PATIENTS 3040 01:48:22,629 --> 01:48:24,097 WHO ARE STUDIED IN THE CLINICAL 3041 01:48:24,164 --> 01:48:25,632 CENTER, INCREASING SUPPORT FOR 3042 01:48:25,699 --> 01:48:28,034 RESEARCH STUDIES IN PREGNANT AND 3043 01:48:28,101 --> 01:48:32,038 LACTATING PEOPLE. 3044 01:48:32,105 --> 01:48:33,373 SO NOW I WOULD LIKE TO HAND IT 3045 01:48:33,440 --> 01:48:35,542 OVER TO MY COLLEAGUE, 3046 01:48:35,609 --> 01:48:45,852 DR. WIDEMANN. 3047 01:48:47,921 --> 01:48:48,922 >> GOOD MORNING, EVERYBODY. 3048 01:48:48,989 --> 01:48:50,123 THANK YOU, DIANA. 3049 01:48:50,190 --> 01:48:52,092 THE LAST PART OF THE WORKING 3050 01:48:52,158 --> 01:48:56,429 GROUP WAS TO -- IN AREAS OF 3051 01:48:56,496 --> 01:48:58,431 INFRASTRUCTURE AND RESOURCES 3052 01:48:58,498 --> 01:49:01,801 WITH ESTABLISHMENT OF GRAND 3053 01:49:01,868 --> 01:49:03,003 ROUNDS AND A DIRECTORY OF 3054 01:49:03,069 --> 01:49:03,436 PEDIATRICIANS. 3055 01:49:03,503 --> 01:49:06,539 I BELIEVE THERE ARE 200 3056 01:49:06,606 --> 01:49:07,874 PEDIATRICIANS, IS THAT RIGHT, 3057 01:49:07,941 --> 01:49:11,177 DR. GILMAN, AT THE NIH CLINICAL 3058 01:49:11,244 --> 01:49:11,611 CENTER? 3059 01:49:11,678 --> 01:49:12,212 >> 250. 3060 01:49:12,279 --> 01:49:13,747 >> IT MORE THAN THAT. 3061 01:49:13,813 --> 01:49:15,882 >> SO IT'S A VERY IMPRESSIVE 3062 01:49:15,949 --> 01:49:17,517 NUMBER, BUT WE ARE IN A SENSE 3063 01:49:17,584 --> 01:49:18,752 ISOLATED AND NOT REALLY ENGAGED. 3064 01:49:18,818 --> 01:49:22,022 IT WAS TO CREATE MORE OF A 3065 01:49:22,088 --> 01:49:25,458 PEDIATRIC SECTION IN THE IRB, TO 3066 01:49:25,525 --> 01:49:26,960 ESTABLISH A CORE FOCUSED ON 3067 01:49:27,027 --> 01:49:28,695 PROTOCOL DEVELOPMENT FOR 3068 01:49:28,762 --> 01:49:31,765 PEDIATRIC CLINICAL RESEARCH 3069 01:49:31,831 --> 01:49:34,801 STUDIES. 3070 01:49:34,868 --> 01:49:37,370 A PEDIATRIC NATIONAL HISTORY 3071 01:49:37,437 --> 01:49:37,704 CONCIERGE. 3072 01:49:37,771 --> 01:49:38,905 WE HAVE MANY, MANY NATURAL 3073 01:49:38,972 --> 01:49:40,774 HISTORY STUDIES AT THE NIH 3074 01:49:40,840 --> 01:49:41,808 CLINICAL CENTER THAT HAVE REALLY 3075 01:49:41,875 --> 01:49:43,443 LED TO GROUNDBREAKING 3076 01:49:43,510 --> 01:49:44,878 OBSERVATIONS, BUT FREQUENTLY WE 3077 01:49:44,945 --> 01:49:47,881 WORK, AGAIN, IN SILOS AND WE'RE 3078 01:49:47,948 --> 01:49:50,717 REINVENTING NATURAL HISTORY 3079 01:49:50,784 --> 01:49:52,252 STUDIES BY OURSELVES. 3080 01:49:52,319 --> 01:49:54,788 MODULAR CASE REPORT FORMS AND 3081 01:49:54,854 --> 01:49:56,156 ESTABLISHMENT OF COMMON DATA 3082 01:49:56,222 --> 01:49:57,324 ELEMENTS, MEANING DATA ELEMENTS 3083 01:49:57,390 --> 01:50:00,994 WE USE ACROSS DISEASES AND 3084 01:50:01,061 --> 01:50:01,561 ACROSS INSTITUTES. 3085 01:50:01,628 --> 01:50:02,829 IT'S SOMETHING WE ARE WORKING ON 3086 01:50:02,896 --> 01:50:05,031 AT THE NCI WITH THE CHILDHOOD 3087 01:50:05,098 --> 01:50:07,634 CANCER DATA INITIATIVE AND COULD 3088 01:50:07,701 --> 01:50:10,136 BE A RESOURCE FOR OTHER PROJECTS 3089 01:50:10,203 --> 01:50:10,804 AS WELL. 3090 01:50:10,870 --> 01:50:13,640 AND THEN FINALLY, PEDIATRIC 3091 01:50:13,707 --> 01:50:15,675 FRIENDLY IMAGING RESOURCES AND 3092 01:50:15,742 --> 01:50:17,777 ENVIRONMENT FOR VERY YOUNG KIDS. 3093 01:50:17,844 --> 01:50:19,179 THERE IS A LOT THAT WOULD NEED 3094 01:50:19,245 --> 01:50:24,050 TO BE DONE AT THE NIH. 3095 01:50:24,117 --> 01:50:25,685 AND THEN ULTIMATELY DATA 3096 01:50:25,752 --> 01:50:26,786 MANAGEMENT AND DATA SHARING 3097 01:50:26,853 --> 01:50:28,722 WHICH, AGAIN, IS A BIG EFFORT OF 3098 01:50:28,788 --> 01:50:30,323 NCI CHILDHOOD CANCER DATA 3099 01:50:30,390 --> 01:50:33,259 INITIATIVE AND COULD BENEFIT 3100 01:50:33,326 --> 01:50:34,494 OTHER INSTITUTES. 3101 01:50:34,561 --> 01:50:37,630 WHAT I'M DOING NOW IS TO BRIEFLY 3102 01:50:37,697 --> 01:50:38,598 SUMMARIZE THE RECOMMENDATIONS 3103 01:50:38,665 --> 01:50:41,768 THAT DR. BIANCHI AND I JUST 3104 01:50:41,835 --> 01:50:43,703 PRESENTED BY LOOKING AT HOW 3105 01:50:43,770 --> 01:50:46,039 COULD WE GET TO THE REALIZATION 3106 01:50:46,106 --> 01:50:47,707 OF THESE PRIORITIES BY LOOKING 3107 01:50:47,774 --> 01:50:50,243 AT WHAT HAS MINIMAL, LOW TO 3108 01:50:50,310 --> 01:50:52,212 MODERATE, AND VERY HIGH 3109 01:50:52,278 --> 01:50:54,447 FINANCIAL INVESTMENT. 3110 01:50:54,514 --> 01:50:55,949 SO MINIMAL INVESTMENT WOULD BE 3111 01:50:56,016 --> 01:50:59,719 TO INDEED EXPAND THE PEDIATRIC 3112 01:50:59,786 --> 01:51:01,621 IRB SECTION SO THAT WE CAN 3113 01:51:01,688 --> 01:51:03,790 STREAMLINE THE DEVELOPMENT OF 3114 01:51:03,857 --> 01:51:05,225 PROTOCOLS, RESEARCH STUDIES FOR 3115 01:51:05,291 --> 01:51:08,128 VERY YOUNG CHILDREN, TO DEVELOP 3116 01:51:08,194 --> 01:51:09,896 A DIRECTORY OF CLINICAL CENTER 3117 01:51:09,963 --> 01:51:12,065 PEDIATRIC RESEARCHERS, AND TO 3118 01:51:12,132 --> 01:51:15,301 ESTABLISH GRAND RO GRAND ROUNDSD 3119 01:51:15,368 --> 01:51:17,170 ON CHILD HEALTH WHICH WOULD NOT 3120 01:51:17,237 --> 01:51:20,974 ONLY ENGAGE US BUT I THINK ALSO 3121 01:51:21,041 --> 01:51:23,209 ACCELERATE SCIENCE AND 3122 01:51:23,276 --> 01:51:23,777 COLLABORATIONS. 3123 01:51:23,843 --> 01:51:24,811 LOW TO MODERATE FINANCIAL 3124 01:51:24,878 --> 01:51:27,313 INVESTMENT WOULD BE TO SUPPORT 3125 01:51:27,380 --> 01:51:29,849 PEDIATRIC PHARMACOKINETIC AND 3126 01:51:29,916 --> 01:51:31,151 PHARMACODYNAMIC STUDIES, 3127 01:51:31,217 --> 01:51:33,887 LACTATION STUDIES AS DR. BIANCHI 3128 01:51:33,953 --> 01:51:36,890 ALLUDED TO, AND INFANT AND 3129 01:51:36,956 --> 01:51:37,791 PEDIATRIC METABOLIC STUDIES. 3130 01:51:37,857 --> 01:51:40,193 YOU WILL HEAR FROM JENNIE LUCCA 3131 01:51:40,260 --> 01:51:41,661 FROM THE CHILDREN'S INN, WE 3132 01:51:41,728 --> 01:51:42,662 ACTUALLY MET WITH HER AS PART OF 3133 01:51:42,729 --> 01:51:44,731 OUR WORKING GROUP, AND WE'RE 3134 01:51:44,798 --> 01:51:45,965 THRILLED TO HEAR THAT THE 3135 01:51:46,032 --> 01:51:49,302 CHILDREN'S INN WILL HOPEFULLY 3136 01:51:49,369 --> 01:51:50,136 ACTUALLY FACILITATE THE 3137 01:51:50,203 --> 01:51:51,037 POTENTIAL REALIZATION OF THESE 3138 01:51:51,104 --> 01:51:52,672 GOALS. 3139 01:51:52,739 --> 01:51:55,775 OTHER AREAS WOULD BE INCLUDING 3140 01:51:55,842 --> 01:51:57,844 PHENOTYPING OF PEDIATRIC 3141 01:51:57,911 --> 01:52:01,247 ALL-OF-US PARTICIPANTS THAT HAVE 3142 01:52:01,314 --> 01:52:03,683 SPECIFIC GENOMIC VARIANTS, 3143 01:52:03,750 --> 01:52:06,753 DEVELOPMENT OF THE PROTOCOL AND 3144 01:52:06,820 --> 01:52:07,987 CLINICAL RESEARCH INFRASTRUCTURE 3145 01:52:08,054 --> 01:52:10,190 AS IT RELATES TO PROTOCOL 3146 01:52:10,256 --> 01:52:11,324 DEVELOPMENT, DEVELOPING OF 3147 01:52:11,391 --> 01:52:13,526 COMMON DATA ELEMENTS, IMAGING 3148 01:52:13,593 --> 01:52:16,362 AND SCANNING, AND AS I ALREADY 3149 01:52:16,429 --> 01:52:17,997 MENTIONED, THE NATURAL HISTORY 3150 01:52:18,064 --> 01:52:20,333 STUDY CONCIERGE, A PERSON TO GO 3151 01:52:20,400 --> 01:52:21,601 TO IF I WAS TO DEVELOP A NEW 3152 01:52:21,668 --> 01:52:23,203 NATURAL HISTORY STUDY, WHO COULD 3153 01:52:23,269 --> 01:52:25,705 HELP ME GET IT DEVELOPED QUICKLY 3154 01:52:25,772 --> 01:52:26,873 AND HOPEFULLY CONSISTENT WITH 3155 01:52:26,940 --> 01:52:28,108 OTHER STUDIES IN THE DATA 3156 01:52:28,174 --> 01:52:31,845 COLLECTION. 3157 01:52:31,911 --> 01:52:33,780 AND THEN THE MAJOR FINANCIAL 3158 01:52:33,847 --> 01:52:35,048 INVESTMENT WOULD BE TO ESTABLISH 3159 01:52:35,115 --> 01:52:37,650 THE CLINICAL INFRASTRUCTURE TO 3160 01:52:37,717 --> 01:52:39,085 SUPPORT THE HIGHLY INNOVATIVE 3161 01:52:39,152 --> 01:52:40,019 THERAPIES THAT ARE BEING 3162 01:52:40,086 --> 01:52:41,888 DEVELOPED FOR ADULT PATIENTS AT 3163 01:52:41,955 --> 01:52:44,591 THE NIH CLINICAL CENTER, IN PART 3164 01:52:44,657 --> 01:52:46,259 FOR CHILDREN BUT DEFINITELY NOT 3165 01:52:46,326 --> 01:52:48,394 FOR VERY YOUNG CHILDREN 3166 01:52:48,461 --> 01:52:50,697 CURRENTLY, WHICH WOULD PROVIDE 3167 01:52:50,763 --> 01:52:51,931 POTENTIALLY GROUNDBREAKING 3168 01:52:51,998 --> 01:52:54,634 ADVANCE AS IT RELATES TO GENE 3169 01:52:54,701 --> 01:52:56,870 THERAPY, CELLULAR THERAPY, AND 3170 01:52:56,936 --> 01:52:57,971 OTHER PRECISION THERAPIES 3171 01:52:58,037 --> 01:53:00,273 INCLUDING SMALL MOLECULES. 3172 01:53:00,340 --> 01:53:01,774 AS DR. BIANCHI SAID, THE HOUSE 3173 01:53:01,841 --> 01:53:04,077 OF HOPE FOR PATIENTS OF ALL 3174 01:53:04,144 --> 01:53:05,678 AGES, AND I DON'T KNOW, 3175 01:53:05,745 --> 01:53:06,346 DR. BIANCHI, IF YOU WOULD LIKE 3176 01:53:06,412 --> 01:53:08,882 TO QUICKLY MENTION THE 3177 01:53:08,948 --> 01:53:11,117 APPLICATION TO COMMON FUND 3178 01:53:11,184 --> 01:53:13,219 RESOURCES TO ESTABLISH THIS. 3179 01:53:13,286 --> 01:53:16,156 >> SURE, THANK YOU, BRIGITTE. 3180 01:53:16,222 --> 01:53:18,925 YOU KNOW, WE PRESENTED THIS TO 3181 01:53:18,992 --> 01:53:20,326 OUR COLLEAGUES ON THE CLINICAL 3182 01:53:20,393 --> 01:53:23,563 CENTER GOVERNING BOARD, AND THEY 3183 01:53:23,630 --> 01:53:25,565 WERE LARGELY ENTHUSIASTIC EXCEPT 3184 01:53:25,632 --> 01:53:28,001 THEY WANTED TO KNOW WHAT THIS 3185 01:53:28,067 --> 01:53:30,203 WOULD COST THEM, AND WHETHER IT 3186 01:53:30,270 --> 01:53:32,172 WOULD INCREASE THE SO-CALLED 3187 01:53:32,238 --> 01:53:36,843 SCHOOL TAX THAT EACH INSTITUTE 3188 01:53:36,910 --> 01:53:37,810 RECEIVES TO HELP SUPPORT THE 3189 01:53:37,877 --> 01:53:38,578 CLINICAL CENTER. 3190 01:53:38,645 --> 01:53:40,246 AND WE TOLD THEM THAT WE WERE 3191 01:53:40,313 --> 01:53:42,982 COMMITTED TO NOT RAISING THE 3192 01:53:43,049 --> 01:53:46,085 SCHOOL TAX, BUT WE WOULD 3193 01:53:46,152 --> 01:53:47,921 APPROACH OTHER PLACES TO SEE IF 3194 01:53:47,987 --> 01:53:51,057 THERE WAS INTEREST IN FUNDING, 3195 01:53:51,124 --> 01:53:53,126 AND EVERY YEAR THERE IS AN 3196 01:53:53,193 --> 01:53:54,928 OPPORTUNITY TO APPLY FOR FUNDING 3197 01:53:54,994 --> 01:53:58,431 FROM SOMETHING CALLED THE COMMON 3198 01:53:58,498 --> 01:54:00,533 FUND, WHICH TYPICALLY THE 3199 01:54:00,600 --> 01:54:03,336 DIRECTOR OF THE NIH HAS MADE A 3200 01:54:03,403 --> 01:54:04,938 DECISION ABOUT BUT 3201 01:54:05,004 --> 01:54:08,041 DR. BERTAGNOLLI HAS MADE THIS 3202 01:54:08,107 --> 01:54:13,346 MUCH MORE EGALITARIAN, SHE HAS 3203 01:54:13,413 --> 01:54:14,781 SAID IT HER INTENT THAT SHE HEAR 3204 01:54:14,847 --> 01:54:16,282 FROM US, SO WE PRESENTED MORE OR 3205 01:54:16,349 --> 01:54:17,584 LESS THE SAME THING TO YOU'RE 3206 01:54:17,650 --> 01:54:17,884 COLLEAGUES. 3207 01:54:17,951 --> 01:54:20,920 THERE WERE 10 DIFFERENT 3208 01:54:20,987 --> 01:54:21,888 APPLICATIONS TO THE COMMON FUND. 3209 01:54:21,955 --> 01:54:23,756 WE WERE ONE OF THEM. 3210 01:54:23,823 --> 01:54:26,159 WE MADE THE FIRST CUT INTO THE 3211 01:54:26,226 --> 01:54:28,861 TOP SIX, AND THEN OF THE TOP 3212 01:54:28,928 --> 01:54:31,164 SIX, WE WERE NUMBER TWO IN TERMS 3213 01:54:31,231 --> 01:54:33,399 OF PRIORITY. 3214 01:54:33,466 --> 01:54:35,969 SO I THINK THAT'S GREAT. 3215 01:54:36,035 --> 01:54:37,937 IT SHOWS BROAD SUPPORT ACROSS 3216 01:54:38,004 --> 01:54:39,772 THE ICs BUT DID NOT RESULT IN 3217 01:54:39,839 --> 01:54:41,708 ANY MONEY UNLESS WE SOMEHOW GET 3218 01:54:41,774 --> 01:54:43,910 A BUDGET THAT'S HIGHER THAN WE 3219 01:54:43,977 --> 01:54:45,745 EXPECT, WHICH IS UNLIKELY. 3220 01:54:45,812 --> 01:54:48,348 BUT WE WILL CONTINUE -- WE WILL 3221 01:54:48,414 --> 01:54:49,549 CERTAINLY REAPPLY, AND WE WILL 3222 01:54:49,616 --> 01:54:54,721 CONTINUE TO EXPLORE OTHER 3223 01:54:54,787 --> 01:54:55,688 OPPORTUNITIES BECAUSE MANY OF 3224 01:54:55,755 --> 01:54:59,158 THESE THERAPIES, UNLESS YOU 3225 01:54:59,225 --> 01:54:59,959 PROVIDE THEM IN THE FIRST FEW 3226 01:55:00,026 --> 01:55:01,561 MONTHS OF LIFE, THESE CHILDREN 3227 01:55:01,628 --> 01:55:04,697 WILL SUFFER DEVASTATING 3228 01:55:04,764 --> 01:55:05,598 CONSEQUENCES FROM INHERITED 3229 01:55:05,665 --> 01:55:06,132 DISORDERS. 3230 01:55:06,199 --> 01:55:09,435 AND THERE'S A REAL EQUITY ISSUE 3231 01:55:09,502 --> 01:55:12,472 HERE TOO, NOT JUST BECAUSE SOME 3232 01:55:12,538 --> 01:55:14,240 OF THESE THERAPIES ARE 3233 01:55:14,307 --> 01:55:17,176 INCREDIBLY EXPENSIVE FOR THE 3234 01:55:17,243 --> 01:55:19,879 FAMILIES, BUT ALSO NOT EVERY 3235 01:55:19,946 --> 01:55:21,381 CHILDREN'S UNIT OR CHILDREN'S 3236 01:55:21,447 --> 01:55:23,650 HOSPITAL AROUND THE COUNTRY HAS 3237 01:55:23,716 --> 01:55:25,518 THE EXPERTISE OR RESOURCES TO 3238 01:55:25,585 --> 01:55:28,154 PROVIDE SUCH THERAPY. 3239 01:55:28,221 --> 01:55:29,789 SO THIS REALLY WOULD BE 3240 01:55:29,856 --> 01:55:34,460 TRANSFORMATIVE FOR THE NIH. 3241 01:55:34,527 --> 01:55:36,763 AND WE'RE VERY COMMITTED TO 3242 01:55:36,829 --> 01:55:37,697 CONTINUE TRYING TO GET SUPPORT. 3243 01:55:37,764 --> 01:55:38,598 >> THANK YOU, DIANA. 3244 01:55:38,665 --> 01:55:40,233 WHAT I WOULD LIKE TO ADD, AND I 3245 01:55:40,300 --> 01:55:41,901 KNOW WE TALKED WITH DR. GILMAN 3246 01:55:41,968 --> 01:55:44,070 ABOUT THIS, IF WE CAN TREAT SICK 3247 01:55:44,137 --> 01:55:45,805 PATIENTS THAT ARE VERY YOUNG, WE 3248 01:55:45,872 --> 01:55:48,074 CAN TREAT AND SEE VERY YOUNG 3249 01:55:48,141 --> 01:55:49,275 PEDIATRIC PATIENTS, FOR EXAMPLE, 3250 01:55:49,342 --> 01:55:51,110 ON NATURAL HISTORY STUDIES, 3251 01:55:51,177 --> 01:55:52,979 WHICH IS STILL SOMEWHAT LIMITED 3252 01:55:53,046 --> 01:55:55,381 AND WOULD GREATLY, I BELIEVE, 3253 01:55:55,448 --> 01:55:58,351 ACCELERATE THE LEARNING, BECAUSE 3254 01:55:58,418 --> 01:55:59,752 MANY OF THE CONDITIONS MANIFEST 3255 01:55:59,819 --> 01:56:01,721 AT VERY YOUNG AGE. 3256 01:56:01,788 --> 01:56:08,494 THE OTHER TWO MORE FINANCIAL 3257 01:56:08,561 --> 01:56:09,128 INVESTMENT REQUIRES PRIORITIES 3258 01:56:09,195 --> 01:56:11,631 WOULD BE THE DEEP PHENOTYPING OF 3259 01:56:11,698 --> 01:56:13,599 PEDIATRIC SPECIFIC HEALTHY 3260 01:56:13,666 --> 01:56:14,934 COHORT, AND TO DEVELOP 3261 01:56:15,001 --> 01:56:16,336 POTENTIALLY A COHORT STUDY 3262 01:56:16,402 --> 01:56:18,738 ACROSS ALL CLINICAL CENTER 3263 01:56:18,805 --> 01:56:20,173 PEDIATRIC PATIENTS. 3264 01:56:20,239 --> 01:56:21,674 I BELIEVE THIS IS THE LAST 3265 01:56:21,741 --> 01:56:24,844 SLIDE, AND WE'D BE HAPPY TO TAKE 3266 01:56:24,911 --> 01:56:25,111 QUESTIONS. 3267 01:56:25,178 --> 01:56:28,481 THANK YOU. 3268 01:56:28,548 --> 01:56:29,182 >> DAVID. 3269 01:56:29,248 --> 01:56:31,017 >> THAT WAS A TERRIFIC 3270 01:56:31,084 --> 01:56:32,218 PRESENTATION, AND IT SOUNDS LIKE 3271 01:56:32,285 --> 01:56:34,620 A VERY POWERFUL POTENTIAL 3272 01:56:34,687 --> 01:56:35,822 INITIATIVE, ASSUMING YOU GET 3273 01:56:35,888 --> 01:56:36,356 FUNDS FOR IT. 3274 01:56:36,422 --> 01:56:37,757 THAT RELATES TO MY QUESTION. 3275 01:56:37,824 --> 01:56:39,225 AS A NEW BOARD MEMBER, I'M NOT 3276 01:56:39,292 --> 01:56:44,731 FAMILIAR WITH THE TERM OF ART 3277 01:56:44,797 --> 01:56:45,998 "SCHOOL TAX." 3278 01:56:46,065 --> 01:56:48,000 COULD YOU EDUCATE ME ON HOW MUCH 3279 01:56:48,067 --> 01:56:49,202 MONEY WE'RE TALKING ABOUT AND A 3280 01:56:49,268 --> 01:56:50,103 EXACTLY WHAT DOES DO? 3281 01:56:50,169 --> 01:56:52,338 >> DR. GILMAN WILL TAKE THIS. 3282 01:56:52,405 --> 01:56:56,609 >> SO THE CLINICAL CENTER DOES 3283 01:56:56,676 --> 01:56:59,312 NOT GET A DIRECT APPROPRIATION 3284 01:56:59,379 --> 01:57:03,216 FROM THE CONGRESS, AS THE OTHER 3285 01:57:03,282 --> 01:57:05,852 INSTITUTES AND CENTERS AT THE 3286 01:57:05,918 --> 01:57:09,589 NIH RECEIVE. 3287 01:57:09,655 --> 01:57:14,327 SO FOR THE FIRST ALMOST 40 YEARS 3288 01:57:14,394 --> 01:57:15,661 OF ITS EXISTENCE, THE CLINICAL 3289 01:57:15,728 --> 01:57:17,830 CENTER WAS FUNDED BY BASICALLY 3290 01:57:17,897 --> 01:57:21,667 USER FEES. 3291 01:57:21,734 --> 01:57:25,271 AND FOR THE LAST 23, 24 YEARS, 3292 01:57:25,338 --> 01:57:28,508 THE FUNDING HAS -- AND USER FEES 3293 01:57:28,574 --> 01:57:36,649 BEGAN TO FAIL, BECAUSE IC IC 3294 01:57:36,716 --> 01:57:38,851 DIRECTORS TOO OFTEN FACED THE 3295 01:57:38,918 --> 01:57:41,554 COMPETITION BETWEEN DO I -- I'VE 3296 01:57:41,621 --> 01:57:45,691 GOT THIS VERY EXCELLENT 3297 01:57:45,758 --> 01:57:47,427 INVESTIGATOR WHO'S DOING GREAT 3298 01:57:47,493 --> 01:57:50,062 WORK AND THAT INVESTIGATOR WANTS 3299 01:57:50,129 --> 01:57:53,032 ANOTHER POSTDOC, OR DO I 3300 01:57:53,099 --> 01:57:54,534 PARTICIPATE IN THIS CLINICAL 3301 01:57:54,600 --> 01:57:56,402 RESEARCH TRIAL, WHICH IS GOING 3302 01:57:56,469 --> 01:58:01,774 TO BEAR FRUIT MORE SLOWLY, AND 3303 01:58:01,841 --> 01:58:03,509 THE YOUNG POSTDOC OR THE YOUNG 3304 01:58:03,576 --> 01:58:04,577 INVESTIGATOR IS, YOU KNOW, 3305 01:58:04,644 --> 01:58:07,847 WORKING ON A TENURE CLOCK, AND 3306 01:58:07,914 --> 01:58:11,984 SO ANYWAY, THAT TRADEOFF 3307 01:58:12,051 --> 01:58:13,786 EVENTUALLY RESULTED IN THE 3308 01:58:13,853 --> 01:58:14,754 FAILURE OF SORT OF THE USAGE 3309 01:58:14,821 --> 01:58:16,355 FEE. 3310 01:58:16,422 --> 01:58:19,525 SO FOR THE LAST 23, 24 YEARS, 3311 01:58:19,592 --> 01:58:21,260 THE CLINICAL CENTER BUDGET IS 3312 01:58:21,327 --> 01:58:22,028 APPROVED BY THE CLINICAL CENTER 3313 01:58:22,094 --> 01:58:24,864 GOVERNING BOARD, BUT IT IS THEN 3314 01:58:24,931 --> 01:58:26,098 DIVIDED ACCORDING TO A FORMULA 3315 01:58:26,165 --> 01:58:30,470 THAT'S CALLED THE SCHOOL TAX. 3316 01:58:30,536 --> 01:58:33,506 AND THE SCHOOL TAX HAS COME TO 3317 01:58:33,573 --> 01:58:37,977 EAT AN INCREASINGLY IMPORTANT 3318 01:58:38,044 --> 01:58:41,214 PORTION OF THOSE APPROPRIATIONS. 3319 01:58:41,280 --> 01:58:44,317 KEEP IN MIND THAT ONLY ABOUT 3320 01:58:44,383 --> 01:58:48,154 11 -- SOMEPLACE BETWEEN 11 AND 3321 01:58:48,221 --> 01:58:49,555 15% OF THE CONGRESSIONAL 3322 01:58:49,622 --> 01:58:50,523 APPROPRIATIONS STAY INSIDE THE 3323 01:58:50,590 --> 01:58:52,058 NIH, AND THAT IS WATCHED VERY, 3324 01:58:52,124 --> 01:58:54,126 VERY CAREFULLY. 3325 01:58:54,193 --> 01:58:58,164 AND SO OF THAT PORTION THAT 3326 01:58:58,231 --> 01:59:03,402 STAYS INSIDE THE NIH, THE SCHOOL 3327 01:59:03,469 --> 01:59:06,906 TAX IS A MAJOR DRAW. 3328 01:59:06,973 --> 01:59:10,376 SO A LOT OF DISCUSSIONS ABOUT 3329 01:59:10,443 --> 01:59:12,445 ALL KINDS OF THINGS RELATED TO 3330 01:59:12,512 --> 01:59:14,847 MONEY, AS TIGHT BUDGETS ARE 3331 01:59:14,914 --> 01:59:20,753 OFTEN THE CATALYST FOR CREATIVE 3332 01:59:20,820 --> 01:59:22,154 THINKING AND LOOKING VERY 3333 01:59:22,221 --> 01:59:23,256 CAREFULLY ABOUT WHAT YOU'RE 3334 01:59:23,322 --> 01:59:25,324 SPENDING THE MONEY ON. 3335 01:59:25,391 --> 01:59:27,193 SO THAT'S -- BUT THAT'S THE 3336 01:59:27,260 --> 01:59:29,128 SCHOOL TAX. 3337 01:59:29,195 --> 01:59:31,731 INSTITUTES PAY A PERCENTAGE 3338 01:59:31,797 --> 01:59:33,599 THAT'S BASED ON THEIR 3339 01:59:33,666 --> 01:59:35,468 APPROPRIATION AND THE SIZE OF 3340 01:59:35,535 --> 01:59:36,602 THEIR INTRAMURAL RESEARCH 3341 01:59:36,669 --> 01:59:40,706 PROGRAM. 3342 01:59:40,773 --> 01:59:43,843 >> DR. DEVASKAR. 3343 01:59:43,910 --> 01:59:44,510 >> THANK YOU. 3344 01:59:44,577 --> 01:59:47,446 I FIRST OF ALL WANT TO THANK DRR 3345 01:59:47,513 --> 01:59:48,981 THE TREMENDOUS AMOUNT OF WORK 3346 01:59:49,048 --> 01:59:50,082 THAT MUST HAVE GONE INTO THIS 3347 01:59:50,149 --> 01:59:52,585 OVER THE LAST TWO YEARS. 3348 01:59:52,652 --> 01:59:54,987 TO ENSURE THAT WE OVERCOME THE 3349 01:59:55,054 --> 01:59:58,658 AGE INEQUITY, AS WAS STATED. 3350 01:59:58,724 --> 02:00:00,192 I JUST WANTED TO BRING UP JUST 3351 02:00:00,259 --> 02:00:01,627 TWO ISSUES. 3352 02:00:01,694 --> 02:00:03,896 ONE WAS IMAGING IS VERY 3353 02:00:03,963 --> 02:00:05,698 IMPORTANT WITH THE PHENOTYPING 3354 02:00:05,765 --> 02:00:07,033 THAT YOU'VE STATED. 3355 02:00:07,099 --> 02:00:08,701 SO YOU WANT TO BE SURE IN 3356 02:00:08,768 --> 02:00:13,406 CERTAIN CASES THAT INFANT 3357 02:00:13,472 --> 02:00:16,742 SEDATION ABILITIES ARE AVAILABLE 3358 02:00:16,809 --> 02:00:18,177 AT CCRH. 3359 02:00:18,244 --> 02:00:19,078 AND I'M SURE YOU'VE THOUGHT 3360 02:00:19,145 --> 02:00:19,812 ABOUT IT. 3361 02:00:19,879 --> 02:00:21,013 I JUST DIDN'T SEE IT IN YOUR 3362 02:00:21,080 --> 02:00:22,648 SLIDES. 3363 02:00:22,715 --> 02:00:25,818 SO I JUST WANT TO -- NOT EVERY 3364 02:00:25,885 --> 02:00:27,053 CHILD, BECAUSE I THINK THERE IS 3365 02:00:27,119 --> 02:00:29,522 A LOT OF VIDEO WATCHING THAT 3366 02:00:29,589 --> 02:00:31,857 NOWADAYS MANY PLACES USE FOR 3367 02:00:31,924 --> 02:00:35,061 IMAGING, BUT THERE ARE INFANTS 3368 02:00:35,127 --> 02:00:37,763 WHO DESPITE SWADDLING WILL NEED 3369 02:00:37,830 --> 02:00:38,731 SEDATION. 3370 02:00:38,798 --> 02:00:39,932 AND SOMETIMES INTUBATION. 3371 02:00:39,999 --> 02:00:42,435 SO I JUST WANT TO BE SURE THAT 3372 02:00:42,501 --> 02:00:44,103 THAT CAPABILITY -- AGAIN TALKING 3373 02:00:44,170 --> 02:00:47,006 ALONG THE LINES OF SAFETY, OF 3374 02:00:47,073 --> 02:00:47,873 COURSE, EXIST AND THAT YOU HAVE 3375 02:00:47,940 --> 02:00:51,477 IT IN YOUR PROTOCOLS OR YOUR ASK 3376 02:00:51,544 --> 02:00:54,213 IN YOUR BUDGETS. 3377 02:00:54,280 --> 02:00:56,082 SO THAT'S JUST ONE MAJOR THING. 3378 02:00:56,148 --> 02:00:58,718 AND THE OTHER THING IS I AGREE 3379 02:00:58,784 --> 02:01:01,654 WITH DR. BIANCHI AND 3380 02:01:01,721 --> 02:01:04,590 DR. WIDEMANN THAT THE EARLIER WE 3381 02:01:04,657 --> 02:01:07,994 INSTITUTE INTERVENTIONS, THE 3382 02:01:08,060 --> 02:01:11,397 BETTER THE OUTCOMES, BUT ALSO 3383 02:01:11,464 --> 02:01:15,067 IT'S A LIFE COURSE CHANGE, A 3384 02:01:15,134 --> 02:01:17,370 DRAMATIC CHANGE THAT CAN HAPPEN, 3385 02:01:17,436 --> 02:01:20,006 AS WE'VE SEEN WITH CERTAIN 3386 02:01:20,072 --> 02:01:21,841 NEUROMUSCULAR DISORDERS AND 3387 02:01:21,907 --> 02:01:22,908 OTHER GENE THERAPIES THAT ARE 3388 02:01:22,975 --> 02:01:25,544 COMING TO PASS. 3389 02:01:25,611 --> 02:01:26,846 IT'S THE CELLULAR THERAPY WHERE 3390 02:01:26,912 --> 02:01:29,915 A CHILD CAN GO DOWN THE TUBES 3391 02:01:29,982 --> 02:01:32,418 VERY FAST, AS YOU ALL KNOW, 3392 02:01:32,485 --> 02:01:34,053 DEPENDING, AND WE'VE SEEN IT AT 3393 02:01:34,120 --> 02:01:38,958 MANY CENTERS, AND THIS IS WHY, I 3394 02:01:39,025 --> 02:01:40,693 THINK, DR. GILMAN HAD PUT 3395 02:01:40,760 --> 02:01:41,894 TOGETHER AN EXTERNAL COMMITTEE 3396 02:01:41,961 --> 02:01:46,932 FOR CONSIDERING OF PICU AND 3397 02:01:46,999 --> 02:01:48,367 STABILIZATION AND I THINK IT HAD 3398 02:01:48,434 --> 02:01:50,269 MAINLY TO DO WITH THE CELLULAR 3399 02:01:50,336 --> 02:01:51,470 THERAPY INTERVENTION THAT 3400 02:01:51,537 --> 02:01:52,338 CREATED SOME ANGST WITH THE 3401 02:01:52,405 --> 02:01:53,706 SAFETY ASPECT. 3402 02:01:53,773 --> 02:01:54,807 SO THOSE ARE THE ONLY ISSUES 3403 02:01:54,874 --> 02:01:56,108 THAT I WAS GOING TO RAISE, BUT I 3404 02:01:56,175 --> 02:01:57,677 WANT TO THANK YOU ALL FOR TAKING 3405 02:01:57,743 --> 02:02:02,381 THIS SO MUCH FURTHER THAN IT W 3406 02:02:02,448 --> 02:02:02,548 WAS. 3407 02:02:02,615 --> 02:02:03,015 >> 3408 02:02:03,082 --> 02:02:03,949 >> CAN I ANSWER? 3409 02:02:04,016 --> 02:02:04,817 >> SURE. 3410 02:02:04,884 --> 02:02:06,819 >> PLEASE. 3411 02:02:06,886 --> 02:02:09,922 >> SO THANK YOU, DR. DEVASKAR, 3412 02:02:09,989 --> 02:02:10,690 FOR YOUR COMMENTS. 3413 02:02:10,756 --> 02:02:12,858 I LIKE THE TERM "AGE INEQUITY." 3414 02:02:12,925 --> 02:02:13,959 I WROTE IT DOWN BECAUSE I THINK 3415 02:02:14,026 --> 02:02:15,561 THAT'S PART OF OUR OVERALL 3416 02:02:15,628 --> 02:02:18,230 CONSIDERATION OF INEQUITIES. 3417 02:02:18,297 --> 02:02:20,866 I DIDN'T GET SPECIFIC INTO WHAT 3418 02:02:20,933 --> 02:02:22,234 WE ASKED THE COMMON FUND FOR, 3419 02:02:22,301 --> 02:02:25,004 BUT WE ASKED THEM FOR FUNDS FOR 3420 02:02:25,071 --> 02:02:25,938 TWO THINGS. 3421 02:02:26,005 --> 02:02:29,075 ONE WAS TO ESTABLISH A SMALL 3422 02:02:29,141 --> 02:02:32,611 PEDIATRIC I KRMECU AT THE CLINIL 3423 02:02:32,678 --> 02:02:33,979 CENTER THAT WOULD BE CAPABLE OF 3424 02:02:34,046 --> 02:02:35,281 TAKING CARE OF YOUNG CHILDREN, 3425 02:02:35,347 --> 02:02:38,684 AND THE SECOND THING WAS TO 3426 02:02:38,751 --> 02:02:41,187 ESSENTIALLY ESTABLISH A CONTRACT 3427 02:02:41,253 --> 02:02:43,823 WITH A LOCAL INSTITUTION WITH 3428 02:02:43,889 --> 02:02:47,493 THE EXPERTISE TO CARE FOR 3429 02:02:47,560 --> 02:02:51,764 CHILDREN WHO BECAME CRITICALLY 3430 02:02:51,831 --> 02:02:52,531 ILL AS A RESULT OF THE THERAPY 3431 02:02:52,598 --> 02:02:55,267 THAT WE WERE PROVIDING. 3432 02:02:55,334 --> 02:02:56,802 SO IT WOULD PROBABLY MEAN A 3433 02:02:56,869 --> 02:02:57,403 TRANSFER. 3434 02:02:57,470 --> 02:02:59,839 BUT THAT MONEY WOULD PAY FOR THE 3435 02:02:59,905 --> 02:03:01,373 MEDICAL COSTS ASSOCIATED WITH 3436 02:03:01,440 --> 02:03:02,007 THAT. 3437 02:03:02,074 --> 02:03:08,881 AND I BELIEVE THAT PART OF 3438 02:03:08,948 --> 02:03:10,950 DR. GALL'S -- CORRECT ME IF I'M 3439 02:03:11,016 --> 02:03:14,420 WRONG, BUT I THINK PART OF 3440 02:03:14,487 --> 02:03:15,321 DR. GAL L'S RECOMMENDATIONS THAT 3441 02:03:15,387 --> 02:03:16,722 WERE IMPLEMENTED INCLUDED BETTER 3442 02:03:16,789 --> 02:03:17,490 COVERAGE WITH PEDIATRIC 3443 02:03:17,556 --> 02:03:17,790 ANESTHESIA. 3444 02:03:17,857 --> 02:03:19,859 SO THAT MIGHT BE ABLE TO ADDRESS 3445 02:03:19,925 --> 02:03:21,494 THE IMAGING ISSUE THAT YOU 3446 02:03:21,560 --> 02:03:24,497 RAISED. 3447 02:03:24,563 --> 02:03:28,267 >> THANK YOU FOR THAT. 3448 02:03:28,334 --> 02:03:28,567 DR. BIANCHI. 3449 02:03:28,634 --> 02:03:30,836 >> SO THE PEDIATRIC ANESTHESIA, 3450 02:03:30,903 --> 02:03:32,872 WE ACTUALLY DO PRETTY WELL 3451 02:03:32,938 --> 02:03:34,673 THERE. 3452 02:03:34,740 --> 02:03:37,409 AND WHILE WE HAVE AGE 3453 02:03:37,476 --> 02:03:39,278 LIMITATIONS ON OUR INPATIENT 3454 02:03:39,345 --> 02:03:41,113 PEDIATRICS WARD, WE DO TAKE CARE 3455 02:03:41,180 --> 02:03:43,182 OF YOUNGER CHILDREN AND SMALLER 3456 02:03:43,249 --> 02:03:48,120 CHILDREN AS OUTPATIENTS, AND 3457 02:03:48,187 --> 02:03:49,588 WITH THE UNDIAGNOSED DISEASES 3458 02:03:49,655 --> 02:03:53,325 PROGRAM AND OTHER PROGRAMS, WE 3459 02:03:53,392 --> 02:03:56,962 DO IMAGE YOUNG CHILDREN, WE 3460 02:03:57,029 --> 02:03:59,999 HAVE -- MY LAST INFORMATION WAS 3461 02:04:00,065 --> 02:04:04,170 AT LEAST THREE ANESTHESIOLOGISTS 3462 02:04:04,236 --> 02:04:09,308 TRAINED IN PEDIATRIC 3463 02:04:09,375 --> 02:04:09,708 ANESTHESIOLOGISTS. 3464 02:04:09,775 --> 02:04:16,849 I'LL LEAVE IT AT THAT. 3465 02:04:16,916 --> 02:04:19,852 EVEN BEFORE -- OR AT ABOUT THE 3466 02:04:19,919 --> 02:04:22,321 SAME TIME THAT DR. GALL FINISHED 3467 02:04:22,388 --> 02:04:23,489 HIS WORK IN THE REPORT, AND THAT 3468 02:04:23,556 --> 02:04:25,157 WAS PRESENTED HERE I THINK ABOUT 3469 02:04:25,224 --> 02:04:30,095 A YEAR AGO, WE HAD -- WE ALREADY 3470 02:04:30,162 --> 02:04:35,000 HAD KRRTED WITH THE 3471 02:04:35,067 --> 02:04:39,305 INTENSIVISTS, PEDIATRIC ICU -- 3472 02:04:39,371 --> 02:04:41,340 PEDIATRIC INTENTVISTS FROM 3473 02:04:41,407 --> 02:04:43,642 CHILDREN'S NATIONAL HOSPITAL TO 3474 02:04:43,709 --> 02:04:46,245 BE ON SITE A MUCH GREATER PERIOD 3475 02:04:46,312 --> 02:04:48,113 OF TIME. 3476 02:04:48,180 --> 02:04:51,283 WE STILL HAVE SOME LIMITATIONS, 3477 02:04:51,350 --> 02:04:54,119 WE STILL HAVE THE LIMITATIONS ON 3478 02:04:54,186 --> 02:04:54,687 THE INPATIENT SIDE. 3479 02:04:54,753 --> 02:04:58,991 WE'RE ACTIVELY LOOKING AT 3480 02:04:59,058 --> 02:05:01,060 RELAXING THAT A LITTLE BIT IN 3481 02:05:01,126 --> 02:05:03,028 GOING FROM 3 YEARS OLD DOWN TO 3482 02:05:03,095 --> 02:05:03,896 2, WE THINK THAT'S NOT TOO MUCH 3483 02:05:03,963 --> 02:05:05,531 OF A LEAP FOR US, BUT IT WILL BE 3484 02:05:05,598 --> 02:05:07,600 HARD TO GO MUCH LOWER UNLESS WE 3485 02:05:07,666 --> 02:05:11,003 GET AN INFUSION OF CAPITAL TO 3486 02:05:11,070 --> 02:05:14,473 PROVIDE THE ADDITIONAL SUPPORT 3487 02:05:14,540 --> 02:05:16,108 THAT WE NEED. 3488 02:05:16,175 --> 02:05:20,913 SO THAT'S KIND OF WHERE IT IS. 3489 02:05:20,980 --> 02:05:23,415 DR. BIANCHI DID ACTUALLY TAKE 3490 02:05:23,482 --> 02:05:26,485 THE WORK OF THIS -- OF THE 3491 02:05:26,552 --> 02:05:28,888 WORKING GROUP TO THE PEDIATRIC 3492 02:05:28,954 --> 02:05:32,258 CHAIRS THAT I THINK AMSPIDAC, 3493 02:05:32,324 --> 02:05:33,659 DID I GET THAT RIGHT? 3494 02:05:33,726 --> 02:05:34,093 >> YES. 3495 02:05:34,159 --> 02:05:35,961 >> THEY'VE HAD SOME INPUT INTO 3496 02:05:36,028 --> 02:05:37,496 WHAT THEY WOULD LIKE TO SEE THE 3497 02:05:37,563 --> 02:05:39,565 CLINICAL CENTER BE ABLE T TO DOS 3498 02:05:39,632 --> 02:05:40,332 WELL. 3499 02:05:40,399 --> 02:05:40,566 THANKS. 3500 02:05:40,633 --> 02:05:45,337 >> THANK YOU, DR. GILMAN. 3501 02:05:45,404 --> 02:05:46,505 >> YES, STEPHANIE. 3502 02:05:46,572 --> 02:05:47,973 >> FORGIVE MY IGNORANCE. 3503 02:05:48,040 --> 02:05:49,408 WHAT IS MEANT BY THE TERM 3504 02:05:49,475 --> 02:05:50,476 NATURAL HISTORY STUDY? 3505 02:05:50,542 --> 02:05:51,810 SORRY FOR NOT KNOWING. 3506 02:05:51,877 --> 02:05:53,946 >> MAYBE I'LL TAKE THIS ONE. 3507 02:05:54,013 --> 02:05:56,782 IT MEANS AN OBSERVATIONAL STUDY 3508 02:05:56,849 --> 02:05:59,351 WHERE THERE IS NO INTERVENTION 3509 02:05:59,418 --> 02:06:00,719 AS THE PRIMARY OBJECTIVE. 3510 02:06:00,786 --> 02:06:03,589 WE CAN FOLLOW PATIENTS THAT ARE 3511 02:06:03,656 --> 02:06:06,091 RECEIVING TREATMENT AS PART OF 3512 02:06:06,158 --> 02:06:07,393 THEIR CLINICAL CARE AND SEE WHAT 3513 02:06:07,459 --> 02:06:08,827 THE IMPACT IS, BUT IT WOULD NOT 3514 02:06:08,894 --> 02:06:12,097 BE A PRIMARY INTERVENTION STUDY. 3515 02:06:12,164 --> 02:06:15,601 SO FOR EXAMPLE, IN MY PATIENTS 3516 02:06:15,668 --> 02:06:17,670 WITH NEUROFIBROMATOSIS TYPE I 3517 02:06:17,736 --> 02:06:19,104 WHEN NO CLINICAL TRIALS WERE 3518 02:06:19,171 --> 02:06:20,439 AVAILABLE, I STARTED A NATURAL 3519 02:06:20,506 --> 02:06:22,841 HISTORY STUDY, WE MONITORED 3520 02:06:22,908 --> 02:06:25,210 LONGITUDINALLY THE TUMOR GROWTH, 3521 02:06:25,277 --> 02:06:27,313 THE PATIENT-REPORTED OUTCOMES, 3522 02:06:27,379 --> 02:06:30,883 THEIR IQ, AND MANY OTHER 3523 02:06:30,950 --> 02:06:32,751 FACTORS, AND WE ALSO MONITORED 3524 02:06:32,818 --> 02:06:34,787 THE TREATMENTS THAT THEY WERE 3525 02:06:34,853 --> 02:06:35,054 RECEIVING. 3526 02:06:35,120 --> 02:06:37,556 AND THIS IS THEN IN CONTRAST TO 3527 02:06:37,623 --> 02:06:38,223 INTERVENTIONAL CLINICAL TRIALS 3528 02:06:38,290 --> 02:06:39,758 WHERE WE USE A BEHAVIORAL OR 3529 02:06:39,825 --> 02:06:42,261 MEDICAL OR OTHER TYPES OF 3530 02:06:42,328 --> 02:06:43,262 INTERVENTIONS WHERE WE FOLLOW 3531 02:06:43,329 --> 02:06:43,862 THE OUTCOMES. 3532 02:06:43,929 --> 02:06:44,396 >> THANKS. 3533 02:06:44,463 --> 02:06:46,632 >> AND I WOULD SAY THE NIH 3534 02:06:46,699 --> 02:06:48,701 REALLY IS ONE OF THE BEST PLACES 3535 02:06:48,767 --> 02:06:50,569 TO CONDUCT NATURAL HISTORY 3536 02:06:50,636 --> 02:06:52,004 STUDIES BECAUSE OF THE RESOURCES 3537 02:06:52,071 --> 02:06:54,173 THAT WE HAVE AND WHENEVER I 3538 02:06:54,239 --> 02:06:55,941 WOULD TALK TO MY OUTSIDE 3539 02:06:56,008 --> 02:06:56,909 COLLEAGUES, THEY WOULD SAY THIS 3540 02:06:56,976 --> 02:07:00,179 IS MY DREAM STUDY, BUT I CAN'T 3541 02:07:00,245 --> 02:07:01,280 PARTICIPATE BECAUSE I DON'T HAVE 3542 02:07:01,347 --> 02:07:01,947 THE FUNDING. 3543 02:07:02,014 --> 02:07:05,718 SO BEING ABLE TO EXTEND THE AGE 3544 02:07:05,784 --> 02:07:08,587 TO LOWER AGE WOULD ACTUALLY BE 3545 02:07:08,654 --> 02:07:14,093 VERY IMPACTFUL ALREADY. 3546 02:07:14,159 --> 02:07:18,230 >> THANK YOU VERY MUCH, 3547 02:07:18,297 --> 02:07:19,565 DR. BIANCHI AND WIDEMANN. 3548 02:07:19,631 --> 02:07:21,100 THAT WAS REALLY VERY HELPFUL. 3549 02:07:21,166 --> 02:07:23,402 DO HAVE A QUESTION, 3550 02:07:23,469 --> 02:07:24,503 DR. WIDEMANN, YOU SPOKE ABOUT 3551 02:07:24,570 --> 02:07:25,371 RESOURCES AND INFRASTRUCTURE, 3552 02:07:25,437 --> 02:07:27,206 AND WITH REGARD TO THINGS LIKE 3553 02:07:27,272 --> 02:07:30,376 THE CELLULAR THERAPEUTICS AND 3554 02:07:30,442 --> 02:07:31,377 CAR-T, IS THERE ANY OPPORTUNITY, 3555 02:07:31,443 --> 02:07:32,778 AND THIS MAY BE COMPLETELY 3556 02:07:32,845 --> 02:07:35,748 WRONG, BUT IS THERE ANY 3557 02:07:35,814 --> 02:07:37,282 OPPORTUNITY TO SHARE ANY OF 3558 02:07:37,349 --> 02:07:38,817 THOSE RESOURCES OR 3559 02:07:38,884 --> 02:07:40,552 INFRASTRUCTURE WITH THE ADULT 3560 02:07:40,619 --> 02:07:43,288 CELLULAR THERAPEUTICS OR CAR-T, 3561 02:07:43,355 --> 02:07:46,358 AND COULD THAT HELP FROM A COST 3562 02:07:46,425 --> 02:07:46,658 PERSPECTIVE? 3563 02:07:46,725 --> 02:07:48,127 >> YOUR QUESTION WAS THE 3564 02:07:48,193 --> 02:07:50,062 COLLABORATION WITH ADULT -- FOR 3565 02:07:50,129 --> 02:07:52,164 ADULT CAR-T? 3566 02:07:52,231 --> 02:07:52,664 >> YES. 3567 02:07:52,731 --> 02:07:53,565 >> ABSOLUTELY. 3568 02:07:53,632 --> 02:07:54,933 WHEN THE TARGET IS PRESENT IN 3569 02:07:55,000 --> 02:07:56,335 THE PEDIATRIC TUMOR AND THE 3570 02:07:56,402 --> 02:07:57,770 ADULT TUMOR, I COMPLETELY AGREE, 3571 02:07:57,836 --> 02:08:00,406 YOU WOULD WANT TO STUDY IT IN 3572 02:08:00,472 --> 02:08:01,707 PEDIATRICS AND IN ADULTS. 3573 02:08:01,774 --> 02:08:04,410 THERE ARE TUMORS WHERE THERE IS 3574 02:08:04,476 --> 02:08:06,612 NO COMMONALITY WHERE WE WILL GO 3575 02:08:06,678 --> 02:08:08,781 AFTER TARGETS THAT WE DON'T SEE 3576 02:08:08,847 --> 02:08:10,582 IN ADULT TE TUMORS. 3577 02:08:10,649 --> 02:08:11,950 AGAIN THAT IS ONE OF THE GREAT 3578 02:08:12,017 --> 02:08:13,485 ADVANTAGE, I THINK, AT THE NIH 3579 02:08:13,552 --> 02:08:14,920 CLINICAL CENTER, THAT WE HAVE 3580 02:08:14,987 --> 02:08:16,889 OUR ADULT COLLEAGUES WHO WORK IN 3581 02:08:16,955 --> 02:08:18,490 CELLULAR THERAPY AND IF THEY 3582 02:08:18,557 --> 02:08:19,291 IDENTIFY A TARGET THAT IS 3583 02:08:19,358 --> 02:08:21,360 RELEVANT TO PEDIATRIC TUMORS, 3584 02:08:21,427 --> 02:08:23,562 THAT WOULD FACILITATE AND 3585 02:08:23,629 --> 02:08:25,898 DECREASE THE COST POTENTIALLY 3586 02:08:25,964 --> 02:08:34,173 FOR STUDIES. 3587 02:08:34,239 --> 02:08:35,040 >> JACK? 3588 02:08:35,107 --> 02:08:36,375 >> THANKS VERY MUCH FOR THAT 3589 02:08:36,442 --> 02:08:40,412 REALLY COMPELLING REPORT. 3590 02:08:40,479 --> 02:08:41,680 MY QUESTION REALLY GOES MORE TO 3591 02:08:41,747 --> 02:08:42,314 SCOPE. 3592 02:08:42,381 --> 02:08:44,316 WHAT IS THE AMOUNT YOU'RE 3593 02:08:44,383 --> 02:08:45,384 LOOKING FOR FROM THE COMMON 3594 02:08:45,451 --> 02:08:48,220 FUND, WHAT ARE THE COSTS 3595 02:08:48,287 --> 02:08:48,854 ASSOCIATED WITH THIS? 3596 02:08:48,921 --> 02:08:50,823 >> WE ASKED FOR $12 MILLION. 3597 02:08:50,889 --> 02:08:56,895 >> THAT'S PER YEAR. 3598 02:08:56,962 --> 02:09:00,332 >> DR. DEVASKAR. 3599 02:09:00,399 --> 02:09:01,133 >> THANK YOU AGAIN. 3600 02:09:01,200 --> 02:09:05,237 I JUST WANTED TO SAY THAT THE 3601 02:09:05,304 --> 02:09:06,672 PHENOTYPING OF NORMAL CHILDREN 3602 02:09:06,738 --> 02:09:09,508 TO SERVE AS CONTROLS WILL NOT 3603 02:09:09,575 --> 02:09:11,076 JUST BENEFIT THE INTRAMURAL 3604 02:09:11,143 --> 02:09:12,578 PROGRAM, BUT WOULD BE SUCH AN 3605 02:09:12,644 --> 02:09:13,679 IMPORTANT RESOURCE FOR 3606 02:09:13,745 --> 02:09:16,482 EXTRAMURAL AS WELL. 3607 02:09:16,548 --> 02:09:17,816 AND THE REASON I STATE THAT IS 3608 02:09:17,883 --> 02:09:20,219 IT'S VERY, VERY DIFFICULT TO GET 3609 02:09:20,285 --> 02:09:22,187 NORMAL CHILDREN PHENOTYPED AS A 3610 02:09:22,254 --> 02:09:23,388 CONTROL POPULATION FOR ANY 3611 02:09:23,455 --> 02:09:26,692 STUDIES THAT ARE ONGOING. 3612 02:09:26,758 --> 02:09:28,193 SO I DO WANT TO HIGHLIGHT HOW 3613 02:09:28,260 --> 02:09:31,797 IMPORTANT THAT ASPECT IS. 3614 02:09:31,864 --> 02:09:33,332 THAT ONLY THE NIH PERHAPS CAN 3615 02:09:33,398 --> 02:09:34,900 TAKE IN LARGE NUMBERS AT THE 3616 02:09:34,967 --> 02:09:37,035 CURRENT TIME. 3617 02:09:37,102 --> 02:09:38,570 AND REGARDING AMOUNT THAT 3618 02:09:38,637 --> 02:09:39,938 DR. BIANCHI QUOTED, I MEAN, 3619 02:09:40,005 --> 02:09:42,941 THAT'S WHAT IT WOULD TAKE FOR 3620 02:09:43,008 --> 02:09:43,809 CHILDREN, AND TO DO IT RIGHT. 3621 02:09:43,876 --> 02:09:44,776 SO THANK YOU FOR SHARING THAT 3622 02:09:44,843 --> 02:09:48,747 AMOUNT WITH US. 3623 02:09:48,814 --> 02:09:49,281 >> THANK YOUMENT 3624 02:09:49,348 --> 02:09:51,650 >> AND I WOULD LIKE TO GO BACK 3625 02:09:51,717 --> 02:09:53,218 TO WHICH WE WENT OVER QUICKLY 3626 02:09:53,285 --> 02:09:58,257 THE FACT THAT WE HAVE 250 3627 02:09:58,323 --> 02:09:59,424 CREDENTIALED PEDIATRICIANS AT 3628 02:09:59,491 --> 02:10:03,996 THE CLINICAL CENTER. 3629 02:10:04,062 --> 02:10:05,430 WE WERE ALL ASTONISHED WHEN WE 3630 02:10:05,497 --> 02:10:06,098 FOUND THAT OUT. 3631 02:10:06,165 --> 02:10:10,802 THAT IS SIGNIFICANTLY LARGER 3632 02:10:10,869 --> 02:10:12,971 THAN MANY ACADEMIC PEDIATRIC 3633 02:10:13,038 --> 02:10:13,605 DEPARTMENTS IN THE COUNTRY. 3634 02:10:13,672 --> 02:10:20,612 SO AGAIN, UNDER THE MINIMAL 3635 02:10:20,679 --> 02:10:21,914 COST, WE THINK THAT WE CAN 3636 02:10:21,980 --> 02:10:27,386 ALREADY MOVE FORWARD WITH 3637 02:10:27,452 --> 02:10:28,587 ACTIVITIES THAT WILL ENHANCE THE 3638 02:10:28,654 --> 02:10:30,756 APPRECIATION OF CHILD HEALTH 3639 02:10:30,822 --> 02:10:33,525 RESEARCH AT THE CLINICAL CENTER, 3640 02:10:33,592 --> 02:10:35,494 PARTICULARLY ON CAMPUS AT THE 3641 02:10:35,561 --> 02:10:38,297 NIH, AND THIS IS COMING AT A 3642 02:10:38,363 --> 02:10:41,466 TIME WHERE THE CHILDREN'S INN IS 3643 02:10:41,533 --> 02:10:42,334 PLANNING AN EXPANSION, WHICH 3644 02:10:42,401 --> 02:10:43,302 YOU'RE GOING TO HEAR ABOUT 3645 02:10:43,368 --> 02:10:43,669 SHORTLY. 3646 02:10:43,735 --> 02:10:45,604 SO IT'S LIKE ALL THESE THINGS 3647 02:10:45,671 --> 02:10:49,007 ARE COMING TOGETHER TET, AND WE 3648 02:10:49,074 --> 02:10:51,510 DO HAVE AN OPPORTUNITY, 3649 02:10:51,577 --> 02:10:53,278 PARTICULARLY IN LIGHT OF THE 3650 02:10:53,345 --> 02:10:54,913 ADVANCES IN SCIENCE THAT ARE 3651 02:10:54,980 --> 02:11:01,453 BEING MADE. 3652 02:11:01,520 --> 02:11:05,524 >> DR. DEVASKAR, I WANTED YOU TO 3653 02:11:05,591 --> 02:11:07,359 KNOW THE ANNOUNCEMENT OF THE 3654 02:11:07,426 --> 02:11:08,560 OPENINGS FOR CHILD LIFE 3655 02:11:08,627 --> 02:11:09,628 SPECIALISTS HIT STREET FOR THE 3656 02:11:09,695 --> 02:11:11,263 NIH CLINICAL CENTER WITHIN THE 3657 02:11:11,330 --> 02:11:13,899 PAST WEEK. 3658 02:11:13,966 --> 02:11:15,734 WE ARE -- WITHOUT ADDITIONAL 3659 02:11:15,801 --> 02:11:17,903 RESOURCES, THERE ARE STILL A FEW 3660 02:11:17,970 --> 02:11:19,371 THINGS WE CAN CERTAINLY AFFORD 3661 02:11:19,438 --> 02:11:23,709 DO IN AND HIRING SOME CHILD LIFE 3662 02:11:23,775 --> 02:11:24,610 SPECIALISTS IS ONE OF THE ONES. 3663 02:11:24,676 --> 02:11:26,311 WE DID LISTEN WHEN YOU AND YOUR 3664 02:11:26,378 --> 02:11:27,012 GROUP CAME BY. 3665 02:11:27,079 --> 02:11:27,246 THANKS. 3666 02:11:27,312 --> 02:11:31,717 >> THANK YOU, DR. GILMAN. 3667 02:11:31,783 --> 02:11:32,684 >> DAVID, GO AHEAD. 3668 02:11:32,751 --> 02:11:33,652 >> THANK YOU. 3669 02:11:33,719 --> 02:11:37,155 THIS IS IN FURTHERING MY 3670 02:11:37,222 --> 02:11:37,756 EDUCATION ABOUT THE CLINICAL 3671 02:11:37,823 --> 02:11:37,990 CENTER. 3672 02:11:38,056 --> 02:11:39,658 SO WHEN I HEARD THE ANSWERS, IT 3673 02:11:39,725 --> 02:11:41,426 SEEMED LIKE THAT THE SCHOOL TAX 3674 02:11:41,493 --> 02:11:43,195 WAS LIKE FOR OPERATING FUNDS AND 3675 02:11:43,262 --> 02:11:44,730 THEN I ASSUME THE COMMON FUND 3676 02:11:44,796 --> 02:11:47,399 WAS SOMETHING LIKE A FUND THAT 3677 02:11:47,466 --> 02:11:48,734 YOU COULD START INITIATIVES AT 3678 02:11:48,800 --> 02:11:51,003 THE DISCRETION OF NIH, BEN THEN 3679 02:11:51,069 --> 02:11:54,406 WHEN YOU SAIDTHEN -- BUT THEN WD 3680 02:11:54,473 --> 02:11:56,808 IT'S A $12 MILLION ASK FOR 3681 02:11:56,875 --> 02:11:58,043 OPERATING FUNDS I BECAME A 3682 02:11:58,110 --> 02:11:58,610 LITTLE CONFUSED. 3683 02:11:58,677 --> 02:11:59,678 WOULD THAT GET FOLDED INTO A 3684 02:11:59,745 --> 02:12:00,879 SCHOOL TAX OR NOT? 3685 02:12:00,946 --> 02:12:07,286 >> SO COMMON FUND WOULD BE NEW 3686 02:12:07,352 --> 02:12:09,154 MONEY TO FUND SOMETHING THAT YOU 3687 02:12:09,221 --> 02:12:10,889 WEREN'T FUNDING BEFORE, OKAY? 3688 02:12:10,956 --> 02:12:14,826 BUT THE COMMON FUND ENDS AFTER A 3689 02:12:14,893 --> 02:12:19,231 FEW YEARS. 3690 02:12:19,298 --> 02:12:23,969 AND IT'S A LIMITED YEAR FUNDING. 3691 02:12:24,036 --> 02:12:27,139 THE IDEA IS YOU HAVE TO HAVE THE 3692 02:12:27,205 --> 02:12:28,106 VENTURE CAPITAL, BUT THIS THING 3693 02:12:28,173 --> 02:12:33,712 HAS TO GROW ITS OWN LEGS, AND BE 3694 02:12:33,779 --> 02:12:38,216 SUPPORTED BY THE INSTITUTES AND 3695 02:12:38,283 --> 02:12:39,151 CENTERS WHO ARE INTERESTED IN 3696 02:12:39,217 --> 02:12:39,785 THIS RESEARCH. 3697 02:12:39,851 --> 02:12:43,455 DOES THAT HELP? 3698 02:12:43,522 --> 02:12:44,389 >> OKAY. 3699 02:12:44,456 --> 02:12:45,590 ARE THERE ANY OTHER QUESTIONS? 3700 02:12:45,657 --> 02:12:48,226 IF NOT, DR. BIANCHI AND 3701 02:12:48,293 --> 02:12:49,861 DR. WIDEMANN, THANK YOU SO VERY 3702 02:12:49,928 --> 02:12:50,295 MUCH. 3703 02:12:50,362 --> 02:12:51,897 REALLY APPRECIATE IT. 3704 02:12:51,963 --> 02:12:53,131 REALLY GREAT PRESENTATION TODAY, 3705 02:12:53,198 --> 02:12:53,932 STIMULATED A LOT OF THOUGHT. 3706 02:12:53,999 --> 02:12:54,633 >> THANK YOU. 3707 02:12:54,700 --> 02:12:57,369 >> WE ARE A LITTLE BIT AHEAD OF 3708 02:12:57,436 --> 02:12:58,570 SCHEDULE SO WE'RE SCHEDULED TO 3709 02:12:58,637 --> 02:13:01,640 TAKE A BREAK AT 11:30 WITH THE 3710 02:13:01,707 --> 02:13:03,742 NEXT BRIEFING AT 11:45. 3711 02:13:03,809 --> 02:13:05,110 WHY DON'T WE GO AHEAD AND TAKE 3712 02:13:05,177 --> 02:13:07,012 BREAK NOW AND RECONVENE AT 3713 02:13:07,079 --> 02:13:11,717 11:30, AND IF WE CAN GET JENNIE 3714 02:13:11,783 --> 02:13:13,452 LUCCA HERE -- OKAY, GREAT. 3715 02:13:13,518 --> 02:13:14,119 SO WE'RE ON BREAK. 3716 02:13:14,186 --> 02:13:33,038 THANK YOU. 3717 02:13:33,105 --> 02:13:33,939 JENNIE HAS A WONDERFUL 3718 02:13:34,005 --> 02:13:36,675 PRESENTATION TO SHARE INFORMING 3719 02:13:36,742 --> 02:13:38,844 US ABOUT WHAT THE INN DOES, HOW 3720 02:13:38,910 --> 02:13:40,512 IT PARTNERS WITH THE CLINICAL 3721 02:13:40,579 --> 02:13:41,480 CENTER PATIENTS AND THEIR 3722 02:13:41,546 --> 02:13:43,782 FAMILIES, THE SERVICES THE INN 3723 02:13:43,849 --> 02:13:45,317 PROVIDES ALONG WITH A LOOK AHEAD 3724 02:13:45,384 --> 02:13:47,285 AT WHAT THE INN IS GOING TO LOOK 3725 02:13:47,352 --> 02:13:47,986 LIKE TOMORROW. 3726 02:13:48,053 --> 02:13:49,287 SO JENNIE, TAKE IT AWAY. 3727 02:13:49,354 --> 02:13:51,423 >> THANK YOU VERY MUCH FOR 3728 02:13:51,490 --> 02:13:52,791 HAVING ME. 3729 02:13:52,858 --> 02:13:54,793 GOOD MORNING TO EVERYONE IN THE 3730 02:13:54,860 --> 02:13:55,560 ROOM AND ON ZOOM. 3731 02:13:55,627 --> 02:13:57,229 THANK YOU FOR GIVING ME THE 3732 02:13:57,295 --> 02:13:58,930 OPPORTUNITY TO TELL YOU ABOUT 3733 02:13:58,997 --> 02:14:00,165 THE CHILDREN'S INN AND OUR PLANS 3734 02:14:00,232 --> 02:14:01,366 TO DO MORE TO SUPPORT THE 3735 02:14:01,433 --> 02:14:02,667 IMPORTANT WORK BEING DONE HERE 3736 02:14:02,734 --> 02:14:07,472 AT THE NIH CLINICAL CENTER. 3737 02:14:07,539 --> 02:14:08,840 THE CHILDREN'S INN IS ONE OF 3738 02:14:08,907 --> 02:14:10,542 FIVE NON-PROFIT PARTNERS TO THE 3739 02:14:10,609 --> 02:14:12,411 NIH LOCATED ON THIS CAMPUS. 3740 02:14:12,477 --> 02:14:17,649 HOPEFULLY YOU HAVE SEEN THE INN, 3741 02:14:17,716 --> 02:14:20,051 YOU'VE DRIVEN BY IT ON CAMPUS, 3742 02:14:20,118 --> 02:14:21,820 AND IF YOU HAVEN'T CONSIDER THIS 3743 02:14:21,887 --> 02:14:23,989 YOUR PERSONAL INVITATION TO COME 3744 02:14:24,055 --> 02:14:25,090 SEE US AND I'D BE HAPPY TO 3745 02:14:25,157 --> 02:14:25,724 PROVIDE WITH YOU A TOUR. 3746 02:14:25,791 --> 02:14:27,025 WHAT YOU SEE ON THIS FIRST SLIDE 3747 02:14:27,092 --> 02:14:29,227 IS ACTUALLY THE CURRENT 65% 3748 02:14:29,294 --> 02:14:30,429 RENDERING OF THE INN OF TOMORROW 3749 02:14:30,495 --> 02:14:31,797 AND I'LL TELL YOU A LITTLE BIT 3750 02:14:31,863 --> 02:14:32,731 MORE ABOUT THAT LATER IN THE 3751 02:14:32,798 --> 02:14:39,271 PRESENTATION. 3752 02:14:39,337 --> 02:14:40,939 SO WHO ARE WE, WHAT DO WE DO AND 3753 02:14:41,006 --> 02:14:42,007 WHY DO WE DO IT? 3754 02:14:42,073 --> 02:14:43,475 AS I MENTIONED, WE'RE ONE OF 3755 02:14:43,542 --> 02:14:45,076 FIVE NON-PROFIT PARTNERS TO THE 3756 02:14:45,143 --> 02:14:45,243 HIV. 3757 02:14:45,310 --> 02:14:46,611 OUR ROLE IS TO PROVIDE LODGING 3758 02:14:46,678 --> 02:14:48,480 AND SUPPORT SERVICES FOR 3759 02:14:48,547 --> 02:14:50,115 CHILDREN, TEEN AND YOUNG ADULTS 3760 02:14:50,182 --> 02:14:51,082 AND THEIR FAMILIES WHO TRAVEL 3761 02:14:51,149 --> 02:14:52,484 FROM ALL AROUND THE WORLD TO 3762 02:14:52,551 --> 02:14:53,819 PARTICIPATE IN CLINICAL RESEARCH 3763 02:14:53,885 --> 02:14:55,120 STUDIES RIGHT HERE AT THE NIH 3764 02:14:55,187 --> 02:14:55,487 CLINICAL CENTER. 3765 02:14:55,554 --> 02:14:57,722 SO THAT'S CONSIDERED INTRAMURAL 3766 02:14:57,789 --> 02:14:58,156 RESEARCH. 3767 02:14:58,223 --> 02:15:00,158 THE VISION FOR THE CHILDREN'S 3768 02:15:00,225 --> 02:15:02,861 INN WAS IN THE 1980s, WHEN 3769 02:15:02,928 --> 02:15:05,797 BRIGITTE'S PREDECESSOR, DR. PHIL 3770 02:15:05,864 --> 02:15:08,233 PIZZO, CHIEF OF THE PEDIATRIC 3771 02:15:08,300 --> 02:15:09,434 ONCOLOGY BRANCH AT THE TIME SAW 3772 02:15:09,501 --> 02:15:10,402 PARENTS TALKING WITH OTHER 3773 02:15:10,469 --> 02:15:11,703 FAMILIES IN THE WAITING ROOMS 3774 02:15:11,770 --> 02:15:12,904 BUILDING SUPPORT NETWORKS NOT 3775 02:15:12,971 --> 02:15:15,440 WANTING TO GO BACK TO HOTELS, 3776 02:15:15,507 --> 02:15:16,842 EATING OUT OF VENDING MACHINES 3777 02:15:16,908 --> 02:15:19,144 AND EVEN SLEEPING IN THE WAITING 3778 02:15:19,211 --> 02:15:20,145 ROOMS AND THOUGHT, WOW, WOULDN'T 3779 02:15:20,212 --> 02:15:21,880 IT BE GREAT TO HAVE A PLACE 3780 02:15:21,947 --> 02:15:22,747 WHERE FAMILIES COULD STAY 3781 02:15:22,814 --> 02:15:24,182 TOGETHER, WHICH WOULD ALSO HELP 3782 02:15:24,249 --> 02:15:25,750 CLINICAL RESEARCHERS COMPLETE 3783 02:15:25,817 --> 02:15:28,653 THEIR WORKS A WELL. 3784 02:15:28,720 --> 02:15:31,189 THE NIH DONATED 2 1/2 ACRES OF 3785 02:15:31,256 --> 02:15:31,523 LAND. 3786 02:15:31,590 --> 02:15:33,959 MERCK DONATED THE INITIAL 3787 02:15:34,025 --> 02:15:35,126 3-POINT # MILLION DOLLARS TO 3788 02:15:35,193 --> 02:15:37,195 BUILD THE END AND SPOUSES AND 3789 02:15:37,262 --> 02:15:40,932 MEMBERS OF CONGRESS RAISED THE 3790 02:15:40,999 --> 02:15:42,267 INITIAL FUNDS TO OPEN THE 3791 02:15:42,334 --> 02:15:42,701 CHILDREN'S IN. 3792 02:15:42,767 --> 02:15:44,903 WE OPENED THE DOORS IN 1990 AND 3793 02:15:44,970 --> 02:15:47,405 WE REPRESENT A VERY SUCCESSFUL 3794 02:15:47,472 --> 02:15:48,507 UNIQUE PUBLIC-PRIVATE 3795 02:15:48,573 --> 02:15:49,608 PARTNERSHIP IN THAT WE ARE 3796 02:15:49,674 --> 02:15:53,144 LOCATED ON A FEDERALLY FUNDED 3797 02:15:53,211 --> 02:15:54,846 CAMPUS BUT WE ARE A NON-PROFIT 3798 02:15:54,913 --> 02:15:55,714 ORGANIZATION RESPONSIBLE FOR 3799 02:15:55,780 --> 02:15:59,784 RAISING OUR $12 MILLION ANNUAL 3800 02:15:59,851 --> 02:16:01,820 BUDGET WHICH IS PRIMARILY FUNDED 3801 02:16:01,887 --> 02:16:03,788 THROUGH PRIVATE PHILANTHROPY. 3802 02:16:03,855 --> 02:16:05,223 SO EVERYTHING WE DO AT THE INN 3803 02:16:05,290 --> 02:16:06,658 STRIVES TO REDUCE THE MANY 3804 02:16:06,725 --> 02:16:08,527 BURDENS THAT IMPACT A FAMILY 3805 02:16:08,593 --> 02:16:10,729 WITH A SICK FAMILY MEMBER, 3806 02:16:10,795 --> 02:16:12,430 ESPECIALLY A CHILD, GIVE KIDS 3807 02:16:12,497 --> 02:16:13,999 THE OPPORTUNITY TO HAVE SOME 3808 02:16:14,065 --> 02:16:17,502 NORMAL CHILDHOOD EXPERIENCES AND 3809 02:16:17,569 --> 02:16:18,703 CHILDHOOD AND OF COURSE HELP 3810 02:16:18,770 --> 02:16:20,672 ADVANCE THE MEDICAL RESEARCH 3811 02:16:20,739 --> 02:16:24,276 MISSION OF THE NIH. 3812 02:16:24,342 --> 02:16:25,577 THE WAY WE SUPPORT FAMILIES 3813 02:16:25,644 --> 02:16:28,113 COMES IN MANY FORMS FROM SPECIAL 3814 02:16:28,179 --> 02:16:29,514 TECHNOLOGY DOLLARS TO SUPPORT 3815 02:16:29,581 --> 02:16:33,351 KIDS WHO MIGHT BE ON ISOLATION, 3816 02:16:33,418 --> 02:16:33,852 TELEHEALTH CAPABILITIES. 3817 02:16:33,919 --> 02:16:35,453 WE DELIVER OVER A THOUSAND 3818 02:16:35,520 --> 02:16:36,955 RECREATIONAL EDUCATIONAL AND 3819 02:16:37,022 --> 02:16:38,690 THERAPEUTIC PROGRAMS TO KEEP 3820 02:16:38,757 --> 02:16:41,793 FAMILIES STRONG, AND OF COURSE 3821 02:16:41,860 --> 02:16:42,994 WE PROVIDE FAMILIES WITH THE 3822 02:16:43,061 --> 02:16:45,163 OPPORTUNITY TO BE PART OF A 3823 02:16:45,230 --> 02:16:46,164 COMMUNITY THAT UNDERSTANDS WHAT 3824 02:16:46,231 --> 02:16:46,932 THEY'RE GOING THROUGH. 3825 02:16:46,998 --> 02:16:49,200 SO WHETHER A CHILD IS VISITING 3826 02:16:49,267 --> 02:16:51,269 US ONE TIME OR MANY TIMES, IT 3827 02:16:51,336 --> 02:16:53,138 MIGHT BE THE ONLY TIME THEY MEET 3828 02:16:53,204 --> 02:16:54,372 ANOTHER CHILD WHO SHARES THEIR 3829 02:16:54,439 --> 02:16:55,640 SAME RARE DIAGNOSIS OR THE ONLY 3830 02:16:55,707 --> 02:16:57,208 TIME A FAMILY HAS THE 3831 02:16:57,275 --> 02:16:58,843 OPPORTUNITY TO TALK TO ANOTHER 3832 02:16:58,910 --> 02:16:59,744 FAMILY WHO UNDERSTANDS EXACTLY 3833 02:16:59,811 --> 02:17:02,280 WHAT THEY'RE GOING THROUGH 3834 02:17:02,347 --> 02:17:04,549 BECAUSE THEY'RE GOING THROUGH IT 3835 02:17:04,616 --> 02:17:07,052 TOO. 3836 02:17:07,118 --> 02:17:09,387 WE CERTAINLY DO NOT DO OUR WORK 3837 02:17:09,454 --> 02:17:09,688 ALONE. 3838 02:17:09,754 --> 02:17:11,156 WE'RE VERY LUCKY TO HAVE A VERY 3839 02:17:11,222 --> 02:17:12,891 STRONG COMMUNITY THAT SURROUNDS 3840 02:17:12,958 --> 02:17:15,527 US FROM 45 STAFF MEMBERS TO 200 3841 02:17:15,594 --> 02:17:18,129 VOLUNTEERS, MANY OF THOSE ARE 3842 02:17:18,196 --> 02:17:21,633 NIHERS, TO A SOLID CADRE OF 3843 02:17:21,700 --> 02:17:22,734 INDIVIDUALS AND CORPORATIONS WHO 3844 02:17:22,801 --> 02:17:24,302 LEND THEIR ADVICE, THEIR TIME 3845 02:17:24,369 --> 02:17:25,804 AND THEIR RESOURCES TO HELP US 3846 02:17:25,870 --> 02:17:30,709 ACHIEVE OUR MISSION. 3847 02:17:30,775 --> 02:17:31,710 THIS IS ZILLY. 3848 02:17:31,776 --> 02:17:33,478 SHE IS OUR RESIDENT THERAPY DOG. 3849 02:17:33,545 --> 02:17:34,679 SHE DESERVED HER OWN SLIDE 3850 02:17:34,746 --> 02:17:36,114 BECAUSE OF HOW IMPORTANT SHE IS 3851 02:17:36,181 --> 02:17:37,515 TO US AND EVERYBODY HERE ON 3852 02:17:37,582 --> 02:17:37,849 CAMPUS. 3853 02:17:37,916 --> 02:17:40,218 IF YOU LOOKED AT OUR LEADERSHIP 3854 02:17:40,285 --> 02:17:42,253 TEAM PAGE ON THE WEBSITE, SHE'S 3855 02:17:42,320 --> 02:17:44,990 PERMLY LISTED AS THE CHIEF 3856 02:17:45,056 --> 02:17:46,424 EMOTIONAL SUPPORT AND ENGAGEMENT 3857 02:17:46,491 --> 02:17:46,658 OFFICER. 3858 02:17:46,725 --> 02:17:47,993 SHE NOT ONLY SUPPORTS KIDS AT 3859 02:17:48,059 --> 02:17:51,229 THE INN BUT DOES MAKE TRIPS TO 3860 02:17:51,296 --> 02:17:51,997 THE CLINICAL CENTER AS WELL. 3861 02:17:52,063 --> 02:17:54,399 HERE YOU CAN SEE DR. GILMAN 3862 02:17:54,466 --> 02:17:55,834 PARTICIPATING IN ONE OF HER 3863 02:17:55,900 --> 02:17:56,968 BIRTHDAY PARTIES WHICH ACTUALLY 3864 02:17:57,035 --> 02:17:58,370 JUST HAPPENED YESTERDAY, SHE 3865 02:17:58,436 --> 02:17:58,803 TURNED 10 YESTERDAY. 3866 02:17:58,870 --> 02:18:01,473 SHE'S A WONDERFUL, WONDERFUL 3867 02:18:01,539 --> 02:18:03,508 PART OF WHAT WE DO AND WE DO 3868 02:18:03,575 --> 02:18:06,144 HAVE A LOT OF ANIMAL THERAPIES, 3869 02:18:06,211 --> 02:18:07,646 WE DO KNOW HOW IMPORTANT ANIMALS 3870 02:18:07,712 --> 02:18:08,213 ARE TO HEALING. 3871 02:18:08,279 --> 02:18:09,881 SO THE NIH RELIES ON US TO 3872 02:18:09,948 --> 02:18:11,583 PROVIDE A SUPPORTIVE 3873 02:18:11,650 --> 02:18:14,219 INFRASTRUCTURE FOR FAMILIES TO 3874 02:18:14,286 --> 02:18:17,188 PARTICIPATE IN IN CLINICAL 3875 02:18:17,255 --> 02:18:19,691 RESEARCH. 3876 02:18:19,758 --> 02:18:21,660 WE CURRENTLY CAN SUPPORT 60 3877 02:18:21,726 --> 02:18:22,894 FAMILIES THEY CHILDREN'S INN. 3878 02:18:22,961 --> 02:18:24,562 WE HAVE THREE APARTMENTS IN 3879 02:18:24,629 --> 02:18:25,797 BETHESDA. 3880 02:18:25,864 --> 02:18:27,098 ABOUT ONE IN 10 OF OUR FAMILIES 3881 02:18:27,165 --> 02:18:29,567 ARE CONSIDERED A LONG TERM STAY 3882 02:18:29,634 --> 02:18:30,502 FAMILY, MEANING THEY'RE STAYING 3883 02:18:30,568 --> 02:18:32,437 WITH US AT LEAST 80 DAYS BUT 3884 02:18:32,504 --> 02:18:33,838 OFTEN IT'S SIX MONTHS OR MORE. 3885 02:18:33,905 --> 02:18:35,507 THEY PARTICIPATE IN ABOUT 480 OF 3886 02:18:35,573 --> 02:18:37,275 THE INTRAMURAL CLINICAL RESEARCH 3887 02:18:37,342 --> 02:18:39,010 STUDIES HAPPENING HERE AT THE 3888 02:18:39,077 --> 02:18:41,312 CLINICAL CENTER AT 15 OF THE 27 3889 02:18:41,379 --> 02:18:42,213 INSTITUTES AND CENTERS. 3890 02:18:42,280 --> 02:18:44,616 WE KNOW THAT PATIENTS AND THEIR 3891 02:18:44,683 --> 02:18:47,018 FAMILIES ARE A CRITICAL PARTNER 3892 02:18:47,085 --> 02:18:50,221 TO MEDICAL RESEARCH, AND SO THIS 3893 02:18:50,288 --> 02:18:52,824 IS THE WAY IN WHICH THEY ARE 3894 02:18:52,891 --> 02:18:54,826 HELPING THIS PARTNERSHIP ACHIEVE 3895 02:18:54,893 --> 02:18:57,529 ITS MISSION FROM HELPING TO 3896 02:18:57,595 --> 02:19:00,765 ADVANCE CUTTING EDGE TREATMENTS 3897 02:19:00,832 --> 02:19:01,866 TO TRYING TO REMOVE BARRIERS SO 3898 02:19:01,933 --> 02:19:04,035 THAT EVERYBODY THAT NEEDS TO 3899 02:19:04,102 --> 02:19:05,036 PARTICIPATE IN THE STUDY HERE 3900 02:19:05,103 --> 02:19:06,237 CAN, AND OF COURSE WE KNOW THAT 3901 02:19:06,304 --> 02:19:07,906 THEY UNLOCK TREATMENTS THAT ARE 3902 02:19:07,972 --> 02:19:11,409 THEN SHARED AROUND THE WORLD. 3903 02:19:11,476 --> 02:19:12,811 HERE'S SOME EXAMPLES OF THE 3904 02:19:12,877 --> 02:19:16,247 IMPACT THAT THE IN NHAS HAD IN 3905 02:19:16,314 --> 02:19:17,449 OUR ALMOST 34 YEARS THAT WE'RE 3906 02:19:17,515 --> 02:19:19,617 VERY PROUD. 3907 02:19:19,684 --> 02:19:21,720 YOU'VE HEARD SOME OF THESE A 3908 02:19:21,786 --> 02:19:25,423 LITTLE BIT EARLIER FROM 3909 02:19:25,490 --> 02:19:27,092 CAR-T-CELL AND ALL TO SUPPORT 3910 02:19:27,158 --> 02:19:29,060 FOR SICKLE CELL DISEASE, SOME 3911 02:19:29,127 --> 02:19:30,695 PEOPLE DON'T KNOW HOW MANY KIDS 3912 02:19:30,762 --> 02:19:32,130 FROM NIMH, MENTAL HEALTH, STAY 3913 02:19:32,197 --> 02:19:33,198 WITH US, WHICH IS AN IMPORTANT 3914 02:19:33,264 --> 02:19:36,000 PART OF WHAT WE DO. 3915 02:19:36,067 --> 02:19:38,503 AND OF COURSE THE EARLIEST 3916 02:19:38,570 --> 02:19:40,004 STUDIES FOR PEDIATRIC HIV AND 3917 02:19:40,071 --> 02:19:41,673 AIDS WERE DONE HERE, THOSE KIDS 3918 02:19:41,740 --> 02:19:43,541 STAYED WITH US AT THE CHILDREN'S 3919 02:19:43,608 --> 02:19:43,775 INN. 3920 02:19:43,842 --> 02:19:44,843 FAMILIES COME FROM ALL OVER THE 3921 02:19:44,909 --> 02:19:47,612 WORLD, WE'RE UP TO MAYBE 106 3922 02:19:47,679 --> 02:19:48,546 COUNTRIES, I THINK IT IS, AND 3923 02:19:48,613 --> 02:19:49,914 MORE THAN 16,000 FAMILIES HAVE 3924 02:19:49,981 --> 02:19:55,053 STAYED WITH US SINCE THE INN 3925 02:19:55,120 --> 02:19:55,520 OPENED. 3926 02:19:55,587 --> 02:19:56,988 I CAN STAND UP HERE AND TELL YOU 3927 02:19:57,055 --> 02:19:58,022 ABOUT THE CHILDREN'S INN BUT I 3928 02:19:58,089 --> 02:19:59,090 THINK IT'S BEST FOR YOU TO HEAR 3929 02:19:59,157 --> 02:20:01,659 IT DIRECTLY FROM AUTUMN AND HER 3930 02:20:01,726 --> 02:20:03,394 MOM, WHO STAY WITH US AND I 3931 02:20:03,461 --> 02:20:05,797 THINK YOU'LL SEE A FAMILIAR 3932 02:20:05,864 --> 02:20:10,635 DOCTOR AS WELL. 3933 02:20:10,702 --> 02:20:13,505 >> MY NAME IS AUTUMN, I'M 3934 02:20:13,571 --> 02:20:16,875 9 YEARS OLD AND I COME FROM 3935 02:20:16,941 --> 02:20:17,442 KANSAS. 3936 02:20:17,509 --> 02:20:20,345 >> WE COME TO THE CHILDREN'S 3937 02:20:20,411 --> 02:20:23,314 INTO GO TO THE CLINICAL TRIALS 3938 02:20:23,381 --> 02:20:25,083 AT THE NIH. 3939 02:20:25,150 --> 02:20:28,820 SHE HAS NEUROFIBROMA PTOSIS. 3940 02:20:28,887 --> 02:20:32,190 >> I'M DR. BMESIG WIDEMANN, AND 3941 02:20:32,257 --> 02:20:35,026 I'M DIRECTING A RESEARCH PROGRAM 3942 02:20:35,093 --> 02:20:37,262 DIRECTED AT A DISEASE CALLED 3943 02:20:37,328 --> 02:20:38,396 NEUROFIBROMATOSIS TYPE 1, ALSO 3944 02:20:38,463 --> 02:20:40,298 KNOWN AS NF1. 3945 02:20:40,365 --> 02:20:42,400 THE TRIALS THAT WE HAVE DESIGNED 3946 02:20:42,467 --> 02:20:48,339 ARE FOR TUMORS CALLED FL PLEXIFM 3947 02:20:48,406 --> 02:20:48,673 NEUROFIBROMAS. 3948 02:20:48,740 --> 02:20:50,542 THEY ARE NOT CANCER TUMORS BUT 3949 02:20:50,608 --> 02:20:52,744 CAN CAUSE LOTS AND LOTS OF 3950 02:20:52,811 --> 02:20:56,881 CLINICAL PROBLEMS LIKE PAIN, 3951 02:20:56,948 --> 02:20:57,549 DISFIGUREMENT, MOTOR 3952 02:20:57,615 --> 02:20:58,550 DYSFUNCTION, AIRWAY DYSFUNCTION. 3953 02:20:58,616 --> 02:21:00,084 >> BEFORE SHE WAS BORN, WE WERE 3954 02:21:00,151 --> 02:21:01,986 HAVING ULTRASOUNDS WEEKLY, 3955 02:21:02,053 --> 02:21:02,921 TRYING TO FIGURE OUT WHY SHE 3956 02:21:02,987 --> 02:21:04,055 MIGHT LOOK A LITTLE DIFFERENT IN 3957 02:21:04,122 --> 02:21:06,224 MY TUMMY. 3958 02:21:06,291 --> 02:21:08,092 AND THEN SHE WAS BORN. 3959 02:21:08,159 --> 02:21:10,829 I'M SO HAPPY, AND I CAN TELL 3960 02:21:10,895 --> 02:21:12,797 THAT THE NURSES ARE A LITTLE 3961 02:21:12,864 --> 02:21:13,565 CONCERNED, THEY KIND OF TAKE HER 3962 02:21:13,631 --> 02:21:16,067 OFF TO THE SIDE AND AT THE END 3963 02:21:16,134 --> 02:21:17,468 OF IT ALL, THEY SAID WE DON'T 3964 02:21:17,535 --> 02:21:19,037 KNOW WHAT'S WRONG, BUT SOMETHING 3965 02:21:19,103 --> 02:21:21,472 IS. 3966 02:21:21,539 --> 02:21:24,209 WE ACTUALLY HAD A REALLY GREAT 3967 02:21:24,275 --> 02:21:25,643 NEUROLOGIST UP IN KANSAS CITY. 3968 02:21:25,710 --> 02:21:27,812 THEY TOLD US SHE HAD 3969 02:21:27,879 --> 02:21:28,613 NEUROFIBROMATOSIS. 3970 02:21:28,680 --> 02:21:30,882 HE DIRECTED US TO THE CLINICAL 3971 02:21:30,949 --> 02:21:34,419 TRIAL. 3972 02:21:34,485 --> 02:21:35,820 DR. WIDEMANN HAS BEEN HER DOCTOR 3973 02:21:35,887 --> 02:21:37,555 SINCE SHE WAS 2 YEARS OLD. 3974 02:21:37,622 --> 02:21:39,858 WE REALLY FEEL LIKE WE HAVE AN 3975 02:21:39,924 --> 02:21:41,092 ADVOCATE HERE THAT'S FIGHTING 3976 02:21:41,159 --> 02:21:43,828 FOR NOT ONLY NF1 BUT FOR AUTUMN 3977 02:21:43,895 --> 02:21:44,395 SPECIFICALLY. 3978 02:21:44,462 --> 02:21:46,097 >> I'VE KNOWN AUTUMN SINCE SHE'S 3979 02:21:46,164 --> 02:21:47,765 BEEN A LITTLE GIRL, VERY LITTLE, 3980 02:21:47,832 --> 02:21:51,169 AND SHE'S ALWAYS BEEN A 3981 02:21:51,236 --> 02:21:53,037 BEAUTIFUL, ENERGETIC YOUNG LADY. 3982 02:21:53,104 --> 02:21:56,207 WHEN SHE WAS STARTED ON THE MEK 3983 02:21:56,274 --> 02:21:57,976 INHIBITOR, SHE HAD A NICE 3984 02:21:58,042 --> 02:21:59,410 SHRINKAGE, HER TUMOR BECAME 3985 02:21:59,477 --> 02:22:01,579 SMALLER AND HER FACIAL TRAUMA 3986 02:22:01,646 --> 02:22:03,448 WAS LESS DISFIGURING. 3987 02:22:03,514 --> 02:22:04,649 >> WHEN SHE'S NOT ON THE 3988 02:22:04,716 --> 02:22:06,751 MEDICINE, IT GROWS DRAMATICALLY. 3989 02:22:06,818 --> 02:22:07,919 WHEN SHE IS ON THE MEDICINE, 3990 02:22:07,986 --> 02:22:09,354 EVEN IF IT'S NOT SHRINKING A 3991 02:22:09,420 --> 02:22:10,488 TON, AT LEAST IT'S STABLE. 3992 02:22:10,555 --> 02:22:12,223 >> I THINK AUTUMN LOVES THE 3993 02:22:12,290 --> 02:22:13,091 CHILDREN'S INN. 3994 02:22:13,157 --> 02:22:15,126 IT'S THE PLACE WHERE THERE'S A 3995 02:22:15,193 --> 02:22:16,527 MAILBOX, THERE'S A GIFT, I THINK 3996 02:22:16,594 --> 02:22:18,162 EVERY DAY SOMETHING LITTLE IS 3997 02:22:18,229 --> 02:22:19,464 THERE THAT SHE LOVES. 3998 02:22:19,530 --> 02:22:21,633 SHE ALWAYS HAS SOME NEW LITTLE 3999 02:22:21,699 --> 02:22:23,635 FRIENDS WITH HER, SOME STUFFED 4000 02:22:23,701 --> 02:22:24,068 ANIMALS. 4001 02:22:24,135 --> 02:22:25,904 SHE LOVES THE ATMOSPHERE. 4002 02:22:25,970 --> 02:22:27,872 SHE'S VERY OUTGOING AND 4003 02:22:27,939 --> 02:22:28,139 ENERGETIC. 4004 02:22:28,206 --> 02:22:29,440 I BELIEVE AUTUMN IS ONE OF THE 4005 02:22:29,507 --> 02:22:32,010 MAIN REASONS TO COME HERE IS THE 4006 02:22:32,076 --> 02:22:32,510 CHILDREN'S INN. 4007 02:22:32,577 --> 02:22:34,045 >> SO AFTER A LONG DAY AT THE 4008 02:22:34,112 --> 02:22:35,847 HOSPITAL, WE COME BACK HERE TO 4009 02:22:35,914 --> 02:22:36,614 THE CHILDREN'S INN. 4010 02:22:36,681 --> 02:22:38,783 IT REALLY FEELS LIKE HOME. 4011 02:22:38,850 --> 02:22:40,018 WHEN YOU'RE GETTING ABLE TO EAT 4012 02:22:40,084 --> 02:22:41,653 HERE, HAVE HOMEMADE MEALS. 4013 02:22:41,719 --> 02:22:44,622 >> THE OTHER ASPECT IS THAT 4014 02:22:44,689 --> 02:22:45,823 PATIENTS MEET OTHER PATIENTS 4015 02:22:45,890 --> 02:22:46,891 WITH NF1. 4016 02:22:46,958 --> 02:22:48,159 >> WE ALSO DO ACTIVITIES WITH 4017 02:22:48,226 --> 02:22:50,194 OTHER FAMILIES HERE. 4018 02:22:50,261 --> 02:22:52,196 >> I CANNOT OVERSTATE HOW 4019 02:22:52,263 --> 02:22:53,731 IMPORTANT THIS IS BECAUSE THES 4020 02:22:53,798 --> 02:22:57,368 FIND OUTTHEY FIND OUT I'M NOT A. 4021 02:22:57,435 --> 02:22:59,437 >> I KNOW AUTUMN FEELS TBAD 4022 02:22:59,504 --> 02:23:00,972 ABOUT BEING HERE BECAUSE SHE 4023 02:23:01,039 --> 02:23:02,073 KNOWS SHE'S NOT DIFFERENT. 4024 02:23:02,140 --> 02:23:04,776 SOMETIMES BACK AT HOME, I THINK 4025 02:23:04,842 --> 02:23:06,010 THAT SHE DOES FEEL A LOT 4026 02:23:06,077 --> 02:23:08,212 DIFFERENT. 4027 02:23:08,279 --> 02:23:12,583 >> I MADE THREE FRIENDS 4028 02:23:12,650 --> 02:23:13,351 YESTERDAY. 4029 02:23:13,418 --> 02:23:15,086 I LIKE TO FIND BOOKS WITH MY MOM 4030 02:23:15,153 --> 02:23:16,754 AND TODAY I READ CAT IN THE HAT 4031 02:23:16,821 --> 02:23:18,089 TO HER. 4032 02:23:18,156 --> 02:23:19,824 >> THE SENSE THAT THEY ARE NOT 4033 02:23:19,891 --> 02:23:21,993 ALONE AND THEY'RE ALL WORKING 4034 02:23:22,060 --> 02:23:25,496 JOINTLY WITH US ON IDENTIFYING 4035 02:23:25,563 --> 02:23:26,831 EFFECTIVE THERAPIES WITH THE 4036 02:23:26,898 --> 02:23:27,932 HELP OF THE CHILDREN'S INN, THAT 4037 02:23:27,999 --> 02:23:29,567 IS VERY IMPORTANT AND 4038 02:23:29,634 --> 02:23:29,867 IMPRESSIVE. 4039 02:23:29,934 --> 02:23:32,003 >> I HAD NO IDEA WHAT 4040 02:23:32,070 --> 02:23:33,204 NEUROFIBROMATOSIS WAS WHEN 4041 02:23:33,271 --> 02:23:34,539 AUTUMN WAS BORN. 4042 02:23:34,605 --> 02:23:37,709 SO TO ME, TELLING PEOPLE WHAT IT 4043 02:23:37,775 --> 02:23:39,210 IS IS REALLY IMPORTANT. 4044 02:23:39,277 --> 02:23:41,446 THANK YOU TO EVERYBODY AT THE 4045 02:23:41,512 --> 02:23:42,981 CHILDREN'S INN, ALL THE STAFF 4046 02:23:43,047 --> 02:23:44,248 HERE THAT HAS BEEN FULLY 4047 02:23:44,315 --> 02:23:54,625 SUPPORTIVE OF US. 4048 02:24:01,265 --> 02:24:01,466 >> THANK YOU. 4049 02:24:01,532 --> 02:24:03,668 I'M GOING TO TURN NOW TO SHARE 4050 02:24:03,735 --> 02:24:07,405 SOME REALLY EXCITING PLANS FOR 4051 02:24:07,472 --> 02:24:08,439 THE FUTURE OF THE CHILDREN'S 4052 02:24:08,506 --> 02:24:08,706 INN. 4053 02:24:08,773 --> 02:24:12,610 ON THIS SLIDE IS A PHOTO OF OUR 4054 02:24:12,677 --> 02:24:16,280 NEWLY RENOVATED PLAYGROUND WITH 4055 02:24:16,347 --> 02:24:18,016 THIS HOPE SCULPTURE PROMINENTLY 4056 02:24:18,082 --> 02:24:19,550 DISPLAYED IN THE MIDDLE, AND THE 4057 02:24:19,617 --> 02:24:20,985 HOPE SCULPTURE SERVES NOT ONLY 4058 02:24:21,052 --> 02:24:23,755 AS AN ART BUT ALSO AS A PLAY 4059 02:24:23,821 --> 02:24:25,623 STRUCTURE FOR THE KIDS AND IT'S 4060 02:24:25,690 --> 02:24:27,925 BEEN A REALLY INSPIRING PLACE 4061 02:24:27,992 --> 02:24:30,428 FOR THEM TO PLAY. 4062 02:24:30,495 --> 02:24:32,630 SO WHILE WE KNOW THAT NIH IS 4063 02:24:32,697 --> 02:24:37,001 WELL POSITIONED TO LEAD IN RARE 4064 02:24:37,068 --> 02:24:38,636 DISEASES AND CONTINUING TO 4065 02:24:38,703 --> 02:24:43,074 UNLOCK MEDICAL -- THE CHILDREN'S 4066 02:24:43,141 --> 02:24:44,342 INN NEEDS TO KEEP PACE WITH 4067 02:24:44,409 --> 02:24:44,776 THAT. 4068 02:24:44,842 --> 02:24:46,577 SO WE ARE CURRENTLY -- AS I SORT 4069 02:24:46,644 --> 02:24:48,212 OF GAVE YOU A SNEAK PEEK AT THE 4070 02:24:48,279 --> 02:24:49,647 DESIGN, IN THE PLANNING PHASES 4071 02:24:49,714 --> 02:24:53,351 OF OUR INN OF TOMORROW. 4072 02:24:53,418 --> 02:24:55,019 AND THE INN OF TOMORROW ALLIANCE 4073 02:24:55,086 --> 02:24:56,320 WITH A LOT OF WHAT YOU'VE 4074 02:24:56,387 --> 02:24:57,088 ACTUALLY HEARD TODAY. 4075 02:24:57,155 --> 02:25:00,291 WE ARE ALIGNED WITH THE CLINICAL 4076 02:25:00,358 --> 02:25:04,128 CENTER'S STRATEGIC PLAN TO 4077 02:25:04,195 --> 02:25:05,229 SUPPORT, DIAGNOSE AND TREAT 4078 02:25:05,296 --> 02:25:06,864 CHILDREN MUCH EARLIER, AND WE'VE 4079 02:25:06,931 --> 02:25:09,734 SPENT A COUPLE OF YEARS 4080 02:25:09,801 --> 02:25:11,135 INTERVIEWING ALL OF OUR 4081 02:25:11,202 --> 02:25:12,203 STAKEHOLDERS FROM CLINICIANS TO 4082 02:25:12,270 --> 02:25:14,405 FAMILIES AND PATIENTS AND DONORS 4083 02:25:14,472 --> 02:25:17,708 TO THE INN AND WE HAVE THREE 4084 02:25:17,775 --> 02:25:18,943 PRIORITIES GUIDING OUR INN OF 4085 02:25:19,010 --> 02:25:19,477 THE FUTURE. 4086 02:25:19,544 --> 02:25:21,546 THAT IS THAT TO TRANSFORM THE 4087 02:25:21,612 --> 02:25:23,414 BUILDING, TO HELP CONTINUE TO 4088 02:25:23,481 --> 02:25:24,882 ACCELERATE CUTTING EDGE 4089 02:25:24,949 --> 02:25:26,184 PEDIATRIC RESEARCH AND OF COURSE 4090 02:25:26,250 --> 02:25:27,251 TO ADVANCE SUSTAINABILITY AND 4091 02:25:27,318 --> 02:25:28,119 WELL-BEING. 4092 02:25:28,186 --> 02:25:29,520 WE'VE ALSO AS A NON-PROFIT 4093 02:25:29,587 --> 02:25:32,090 ORGANIZATION KICKED OFF A 4094 02:25:32,156 --> 02:25:33,958 $50 MILLION CAPITAL CAMPAIGN TO 4095 02:25:34,025 --> 02:25:38,863 SUPPORT THE INN OF THE FUTURE. 4096 02:25:38,930 --> 02:25:41,065 AND THE INN OF THE FUTURE, THE 4097 02:25:41,132 --> 02:25:43,868 GOAL OF THE INN OF THE FUTURE IS 4098 02:25:43,935 --> 02:25:46,370 ALSO TO SUPPORT KIDS WHO HAVE 4099 02:25:46,437 --> 02:25:48,773 LONGER, MORE INTENSE TREATMENTS 4100 02:25:48,840 --> 02:25:50,341 TO MEET THE CHANGING NEEDS OF 4101 02:25:50,408 --> 02:25:51,943 FAMILIES WHO COME FROM ALL OVER 4102 02:25:52,009 --> 02:25:54,479 THE WORLD. 4103 02:25:54,545 --> 02:25:57,381 TO BE ACCESSIBILITY FOR ALL, OUR 4104 02:25:57,448 --> 02:25:59,550 VISION IS TRULY TO BE ABLE TO 4105 02:25:59,617 --> 02:26:01,052 SUPPORT KIDS REGARDLESS OF THE 4106 02:26:01,119 --> 02:26:02,487 CRITICALITY OF THEIR ILLNESS AND 4107 02:26:02,553 --> 02:26:03,588 REGARDLESS OF THE OBSTACLES THEY 4108 02:26:03,654 --> 02:26:06,090 MIGHT FACE IN THEIR LIVES. 4109 02:26:06,157 --> 02:26:08,092 TO INCREASE OUR ABILITY TO TAKE 4110 02:26:08,159 --> 02:26:10,294 CARE OF VERY SICK CHILDREN 4111 02:26:10,361 --> 02:26:12,930 THROUGH MORE BOLD ISOLATION, AND 4112 02:26:12,997 --> 02:26:14,132 THEN OF COURSE AS YOU'VE HEARD 4113 02:26:14,198 --> 02:26:16,234 TODAY, TO MAKE SURE THAT WE ARE 4114 02:26:16,300 --> 02:26:17,568 READY FOR MUCH YOUNGER CHILDREN 4115 02:26:17,635 --> 02:26:18,736 WHEN THE CLINICAL CENTER IS 4116 02:26:18,803 --> 02:26:23,007 READY. 4117 02:26:23,074 --> 02:26:27,278 SO HERE IS A 65% DESIGN OF OUR 4118 02:26:27,345 --> 02:26:29,580 INN OF TOMORROW. 4119 02:26:29,647 --> 02:26:30,681 EVERYTHING FROM SORT OF THE LEFT 4120 02:26:30,748 --> 02:26:32,884 OVER RIGHT HERE IS NEW. 4121 02:26:32,950 --> 02:26:34,418 THE PROJECT IS A RENOVATION OF 4122 02:26:34,485 --> 02:26:37,688 OUR EXISTING SPACE, WHICH IS THE 4123 02:26:37,755 --> 02:26:38,923 RIGHT AND SORT OF IN THE BACK, 4124 02:26:38,990 --> 02:26:40,424 AND THEN WE'RE MOVING OUR 4125 02:26:40,491 --> 02:26:41,092 ENTRANCE. 4126 02:26:41,159 --> 02:26:44,095 BUT OVER HERE WILL BE A 15,000 4127 02:26:44,162 --> 02:26:45,530 SQUARE FOOT ADDITION, AND 4128 02:26:45,596 --> 02:26:48,466 INCLUDED IN THAT IS A NEW LOBBY. 4129 02:26:48,533 --> 02:26:50,134 THIS WHAT WE'RE CALLING A BEACON 4130 02:26:50,201 --> 02:26:51,536 OF HOPE, WHICH WE'RE REALLY 4131 02:26:51,602 --> 02:26:54,472 EXCITED ABOUT, IT'S A TALL TOWER 4132 02:26:54,539 --> 02:26:56,374 THAT CAN BE SEEN FROM ACROSS 4133 02:26:56,440 --> 02:26:57,508 CAMPUS AND CERTAINLY BY PATIENTS 4134 02:26:57,575 --> 02:26:58,709 WHO ARE IN THE CLINICAL CENTER 4135 02:26:58,776 --> 02:27:02,747 AND WILL BE REALLY FUN IN AN 4136 02:27:02,813 --> 02:27:03,514 INTERACTIVE ON THE INSIDE. 4137 02:27:03,581 --> 02:27:05,816 AND THEN TO THE LEFT HERE WILL 4138 02:27:05,883 --> 02:27:08,786 BE NEW APARTMENT-STYLE ROOMS FOR 4139 02:27:08,853 --> 02:27:10,121 FAMILIES THAT WILL HAVE THE 4140 02:27:10,188 --> 02:27:11,522 CAPABILITY TO SUPPORT KIDS WHO 4141 02:27:11,589 --> 02:27:13,191 ARE ON AIRBORNE ISOLATION, WHICH 4142 02:27:13,257 --> 02:27:14,091 IS SOMETHING THAT WE HAVE NOT 4143 02:27:14,158 --> 02:27:15,893 BEEN ABLE TO DO IN THE PAST, BUT 4144 02:27:15,960 --> 02:27:17,195 WE KNOW THAT KIDS ARE GOING TO 4145 02:27:17,261 --> 02:27:18,796 DO BETTER IF WE CAN GET THEM OUT 4146 02:27:18,863 --> 02:27:19,897 OF THE HOSPITAL WITH THEIR 4147 02:27:19,964 --> 02:27:21,132 FAMILIES AND IN AN ENVIRONMENT 4148 02:27:21,199 --> 02:27:22,333 THAT IS A LITTLE MORE FAMILIAR, 4149 02:27:22,400 --> 02:27:26,737 NOT QUITE HOME, BUT CLOSE TO IT. 4150 02:27:26,804 --> 02:27:27,805 AND THEN I JUST HAVE A COUPLE 4151 02:27:27,872 --> 02:27:29,440 MORE PHOTOS TO SHOW YOU. 4152 02:27:29,507 --> 02:27:31,609 SO HERE'S THE 15,000 SQUARE FOOT 4153 02:27:31,676 --> 02:27:31,876 EXPANSION. 4154 02:27:31,943 --> 02:27:34,412 WE'RE GOING TO INCREASE OUR 4155 02:27:34,478 --> 02:27:35,947 ABILITY -- WE'LL BE ABLE TO TAKE 4156 02:27:36,013 --> 02:27:38,049 CARE OF MORE FAMILIES, AND THIS 4157 02:27:38,115 --> 02:27:39,250 IS SOMETHING WE'RE VERY EXCITED 4158 02:27:39,317 --> 02:27:41,018 ABOUT, THIS IS THE WALKWAY TO 4159 02:27:41,085 --> 02:27:42,253 NIH, SO RIGHT NOW IF YOU'RE AT 4160 02:27:42,320 --> 02:27:43,788 THE INN, YOU'LL SEE FAMILIES 4161 02:27:43,854 --> 02:27:44,655 WALKING THROUGH THE PARKING LOT 4162 02:27:44,722 --> 02:27:46,557 TO GET UP TO THE CLINICAL CENTER 4163 02:27:46,624 --> 02:27:47,525 IF THEY AREN'T TAKING THE 4164 02:27:47,592 --> 02:27:47,758 SHUTTLE. 4165 02:27:47,825 --> 02:27:49,227 NOT THE SAFEST WAY FOR KIDS TO 4166 02:27:49,293 --> 02:27:49,961 GET TO THE CLINICAL CENTER. 4167 02:27:50,027 --> 02:27:51,362 SO THIS WILL BE AN 4168 02:27:51,429 --> 02:27:53,598 ADA-ACCESSIBLE COVERED WALKWAY 4169 02:27:53,664 --> 02:27:54,999 THAT GETS THEM RIGHT UP TO THE 4170 02:27:55,066 --> 02:27:57,201 STREET, NOT QUITE ACROSS THE 4171 02:27:57,268 --> 02:28:00,137 STREET, DAN, BUT CLOSE TO IT. 4172 02:28:00,204 --> 02:28:01,372 AND WE'RE VERY, VERY EXCITED 4173 02:28:01,439 --> 02:28:03,875 ABOUT THAT. 4174 02:28:03,941 --> 02:28:05,543 AGAIN, SOME RESPIRATORY 4175 02:28:05,610 --> 02:28:07,311 ISOLATION SUITES, JUST FLEXIBLE 4176 02:28:07,378 --> 02:28:08,946 ROOMS FOR THE DIVERSE NEEDS OF 4177 02:28:09,013 --> 02:28:10,548 FAMILIES THAT ARE VISITING US. 4178 02:28:10,615 --> 02:28:13,851 AND THEN I MENTIONED ADVANCE 4179 02:28:13,918 --> 02:28:15,753 SUSTAINABILITY AND WELL-BEING, 4180 02:28:15,820 --> 02:28:16,787 OUR ENTIRE RENOVATION AND 4181 02:28:16,854 --> 02:28:21,058 EXPANSION WILL BE 4182 02:28:21,125 --> 02:28:21,525 LEED-SILVER-CERTIFIED. 4183 02:28:21,592 --> 02:28:22,693 PART OF THE REASONS WHY WE 4184 02:28:22,760 --> 02:28:24,262 STARTED ON THIS PATH WAS THE 4185 02:28:24,328 --> 02:28:25,329 CHILDREN'S INN WAS BUILT TO 4186 02:28:25,396 --> 02:28:26,797 COMMERCIAL STANDARDS IN 1990, 4187 02:28:26,864 --> 02:28:28,866 AND OUR BUILDING HAS SERVED US 4188 02:28:28,933 --> 02:28:30,301 WELL, BUT IT'S SHOWING ITS AGE 4189 02:28:30,368 --> 02:28:32,503 AND WEAR AND TEAR AND WE NEED TO 4190 02:28:32,570 --> 02:28:33,604 MODERNIZE IT IN ORDER TO MAKE 4191 02:28:33,671 --> 02:28:35,139 SURE WE'RE READY TO TAKE CARE OF 4192 02:28:35,206 --> 02:28:37,108 THE NIH PATIENTS OF THE FUTURE. 4193 02:28:37,174 --> 02:28:39,243 ALSO SOMETHING KIND OF EXCITING, 4194 02:28:39,310 --> 02:28:40,945 IF YOU ARE DRIVING PAST THE 4195 02:28:41,012 --> 02:28:42,813 CHILDREN'S INN, YOU'LL ALSO SEE 4196 02:28:42,880 --> 02:28:45,149 A NEIGHBORHOOD TO THE LEFT WHICH 4197 02:28:45,216 --> 02:28:47,652 IS, IF I'M ACCURATE, THE FIRST 4198 02:28:47,718 --> 02:28:49,620 NEIGHBORHOOD IN BETHESDA, THE 4199 02:28:49,687 --> 02:28:51,522 HOUSES WERE BUILT IN 1937. 4200 02:28:51,589 --> 02:28:52,757 NIH DIRECTORS USED TO LIVE IN 4201 02:28:52,823 --> 02:28:53,758 THESE HOMES AND NOW THEY'RE USED 4202 02:28:53,824 --> 02:28:54,959 FOR A VARIETY OF DIFFERENT 4203 02:28:55,026 --> 02:28:56,227 REASONS. 4204 02:28:56,294 --> 02:28:58,029 THE INN WAS GIVEN ONE OF THESE 4205 02:28:58,095 --> 02:29:01,065 TO RENOVATE JUST LIKE WE DID THE 4206 02:29:01,132 --> 02:29:02,633 CHILDREN'S INN, AND SO WE BROKE 4207 02:29:02,700 --> 02:29:04,168 GROUND ACTUALLY JUST A COUPLE OF 4208 02:29:04,235 --> 02:29:06,203 WEEKS AGO, HERE YOU SEE 4209 02:29:06,270 --> 02:29:07,905 DR. TABAK AND SOME OTHERS 4210 02:29:07,972 --> 02:29:09,173 STANDING WITH ME AT THE 4211 02:29:09,240 --> 02:29:10,408 GROUNDBREAKING, WHICH WAS REALLY 4212 02:29:10,474 --> 02:29:10,908 EXCITING. 4213 02:29:10,975 --> 02:29:14,378 SO THE PLAN FOR THIS HOME IS TO 4214 02:29:14,445 --> 02:29:15,880 SUPPORT OUR YOUNG ADULT 4215 02:29:15,946 --> 02:29:16,681 PATIENTS, WHICH IS SOMETHING 4216 02:29:16,747 --> 02:29:18,316 THAT IS VERY IMPORTANT AND A 4217 02:29:18,382 --> 02:29:18,983 PRIORITY FOR US. 4218 02:29:19,050 --> 02:29:20,484 SO WE'LL BE ABLE TO SUPPORT SIX 4219 02:29:20,551 --> 02:29:29,327 MORE FAMILIES IN THIS SPACE. 4220 02:29:29,393 --> 02:29:34,765 THIS IS THE CHILDREN'S INN 4221 02:29:34,832 --> 02:29:36,000 HEALTH EQUITY PROMISE. 4222 02:29:36,067 --> 02:29:37,835 I WOULD SAY THE MISSION OF THE 4223 02:29:37,902 --> 02:29:40,071 CHILDREN'S INN IN AND OF ITSELF 4224 02:29:40,137 --> 02:29:42,473 HAS ALWAYS HELD THE VALUES OF 4225 02:29:42,540 --> 02:29:43,240 HEALTH EQUITY. 4226 02:29:43,307 --> 02:29:44,909 OUR WHOLE GOAL IS TO REDUCE THE 4227 02:29:44,975 --> 02:29:46,777 BURDENS AND THE OBSTACLES FACING 4228 02:29:46,844 --> 02:29:48,779 FAMILIES, BUT WE THINK WE CAN DO 4229 02:29:48,846 --> 02:29:50,214 MORE TO INTEGRATE HEALTH EQUITY 4230 02:29:50,281 --> 02:29:51,982 CONCEPTS INTO EVERYTHING WE DO, 4231 02:29:52,049 --> 02:29:54,618 AND I WAS EXCITED TO HEAR 4232 02:29:54,685 --> 02:29:55,586 DR. HADIGAN THIS MORNING TOO, I 4233 02:29:55,653 --> 02:29:56,954 THINK THERE'S JUST AN ALIGNMENT 4234 02:29:57,021 --> 02:29:58,222 ACROSS THE WHOLE NIH TO MAKE 4235 02:29:58,289 --> 02:30:00,191 SURE THAT WE'RE REALLY THINKING 4236 02:30:00,257 --> 02:30:02,093 ABOUT THE INDIVIDUAL NEEDS OF 4237 02:30:02,159 --> 02:30:03,527 PATIENTS AND THEIR FAMILIES AND 4238 02:30:03,594 --> 02:30:05,363 REALLY LISTENING AND MAKING SURE 4239 02:30:05,429 --> 02:30:07,164 THAT THEY FEEL AT HOME HERE AND 4240 02:30:07,231 --> 02:30:08,699 THEY FEEL REALLY COMFORTABLE 4241 02:30:08,766 --> 02:30:09,767 PARTICIPATING IN THE RESEARCH 4242 02:30:09,834 --> 02:30:10,668 FOR AS LONG AS THEY NEED TO 4243 02:30:10,735 --> 02:30:13,771 STAY. 4244 02:30:13,838 --> 02:30:15,840 THAT IS THE END OF MY 4245 02:30:15,906 --> 02:30:16,173 PRESENTATION. 4246 02:30:16,240 --> 02:30:17,608 THANK YOU FOR THE OPPORTUNITY. 4247 02:30:17,675 --> 02:30:19,110 I'M HAPPY TO ANSWER ANY 4248 02:30:19,176 --> 02:30:25,549 QUESTIONS WHILE I'M HERE. 4249 02:30:25,616 --> 02:30:29,587 >> JENNIE, WHAT'S THE SOURCE OF 4250 02:30:29,653 --> 02:30:31,088 FUNDS FOR EVERYTHING THAT YOU'RE 4251 02:30:31,155 --> 02:30:33,391 HOPING TO DO? 4252 02:30:33,457 --> 02:30:34,425 >> FOR THE NEW BUILDING? 4253 02:30:34,492 --> 02:30:38,028 IT'S A CAPITAL CAMPAIGN. 4254 02:30:38,095 --> 02:30:38,996 WE'RE IN CONSIDERED WHAT'S 4255 02:30:39,063 --> 02:30:40,431 CONSIDERED THE QUIET PHASE OF 4256 02:30:40,498 --> 02:30:44,935 THE CAPITAL EXAN CAMPAIGN AND L 4257 02:30:45,002 --> 02:30:46,537 COME FROM FLAN LOW THEE. 4258 02:30:46,604 --> 02:30:49,140 MERCK WAS THE ORIGINAL DONOR, 4259 02:30:49,206 --> 02:30:50,241 THE $3.7 MILLION CAME FROM MERCK 4260 02:30:50,307 --> 02:30:52,109 AND THEY CAME BACK TO US WITH 4261 02:30:52,176 --> 02:30:57,047 THE FIRST LEADERSHIP GIFT SO THE 4262 02:30:57,114 --> 02:30:57,948 FIRST IS FROM MERCK. 4263 02:30:58,015 --> 02:30:58,783 WE'RE ABOUT HALFWAY THERE. 4264 02:30:58,849 --> 02:30:59,216 >> DAVID. 4265 02:30:59,283 --> 02:31:00,818 >> I WONDER WHAT'S THE PRINCIPAL 4266 02:31:00,885 --> 02:31:03,287 SOURCE FOR THE ANNUAL OPERATING 4267 02:31:03,354 --> 02:31:03,521 BUDGET? 4268 02:31:03,587 --> 02:31:04,054 >> SAME. 4269 02:31:04,121 --> 02:31:05,990 WE'RE NOT A FEDERALLY FUNDED 4270 02:31:06,056 --> 02:31:06,290 INSTITUTION. 4271 02:31:06,357 --> 02:31:08,893 WE DO RECEIVE A VERY SMALL 4272 02:31:08,959 --> 02:31:11,762 STIPEND FROM EACH OF THE 4273 02:31:11,829 --> 02:31:12,963 INSTITUTES FOR EACH FAMILY THAT 4274 02:31:13,030 --> 02:31:15,599 STAYS WITH US. 4275 02:31:15,666 --> 02:31:17,134 SO WE -- AGAIN, IT INDIVIDUALS, 4276 02:31:17,201 --> 02:31:20,204 IT'S FOUNDATIONS, CORPORATIONS, 4277 02:31:20,271 --> 02:31:22,873 IT'S PHILANTHROPY. 4278 02:31:22,940 --> 02:31:25,409 >> DR. DEVASKAR. 4279 02:31:25,476 --> 02:31:29,046 >> I JUST WANT TO STATE MY 4280 02:31:29,113 --> 02:31:30,548 APPRECIATION BECAUSE I DID VISIT 4281 02:31:30,614 --> 02:31:31,916 THE INN AND IT'S JUST A 4282 02:31:31,982 --> 02:31:33,184 FANTASTIC PLACE. 4283 02:31:33,250 --> 02:31:35,019 MANY OF US HAVE TO RELY ON 4284 02:31:35,085 --> 02:31:39,023 RONALD MACK DOMED HOUSES AND 4285 02:31:39,089 --> 02:31:40,024 RONALD MCDONALD HOUSES AND TO 4286 02:31:40,090 --> 02:31:42,126 HAVE THIS AT THE NIH IS JUST 4287 02:31:42,193 --> 02:31:43,227 PHENOMENAL. 4288 02:31:43,294 --> 02:31:44,995 I ALSO NOTICED THAT YOU HAVE A 4289 02:31:45,062 --> 02:31:46,163 PET THERAPY PROGRAM, I SAW SOME 4290 02:31:46,230 --> 02:31:46,730 DOGS. 4291 02:31:46,797 --> 02:31:47,364 MAYBE YOU CAN COMMENT ON THAT 4292 02:31:47,431 --> 02:31:47,598 FOR US? 4293 02:31:47,665 --> 02:31:49,300 >> THANK YOU FOR THE QUESTION, 4294 02:31:49,366 --> 02:31:51,969 AND THE RONALD MCDONALD HOUSE IS 4295 02:31:52,036 --> 02:31:52,403 WONDERFUL AS WELL. 4296 02:31:52,470 --> 02:31:53,838 I SHOULD SAY THAT JUST AS THE 4297 02:31:53,904 --> 02:31:55,172 TREATMENT AT THE NIH, ALL OF THE 4298 02:31:55,239 --> 02:31:56,373 SERVICES AT THE CHILDREN'S 4299 02:31:56,440 --> 02:31:57,241 CENTER ARE FREE OF CHARGE AS 4300 02:31:57,308 --> 02:31:57,675 WELL. 4301 02:31:57,741 --> 02:31:59,877 THE PET THERAPY PROGRAM, IT'S 4302 02:31:59,944 --> 02:32:01,779 ZILLY AND THEN ALSO WE'RE WELL 4303 02:32:01,846 --> 02:32:03,747 COORDINATED AS EVERYTHING WE DO 4304 02:32:03,814 --> 02:32:05,049 HERE WITH THE NIH PET THERAPY 4305 02:32:05,115 --> 02:32:06,784 PROGRAM. 4306 02:32:06,851 --> 02:32:08,319 SO THERE'S PEOPLE AND THEIR PETS 4307 02:32:08,385 --> 02:32:10,087 THAT THEY'VE TRAINED TO BE 4308 02:32:10,154 --> 02:32:12,556 ASSIST ANIMALS THAT VISIT THE 4309 02:32:12,623 --> 02:32:14,058 CHILDREN'S INN AND THEY ALSO 4310 02:32:14,124 --> 02:32:15,459 VISIT THE CLINICAL CENTER. 4311 02:32:15,526 --> 02:32:16,794 PETS ARE -- I CAN'T SAY ENOUGH 4312 02:32:16,861 --> 02:32:20,531 ABOUT HOW IMPORTANT PETS ARE. 4313 02:32:20,598 --> 02:32:25,069 ZILLY IS THE MOS MOST BELOVED SF 4314 02:32:25,135 --> 02:32:26,170 MEMBER BECAUSE KIDS ARE MISSING 4315 02:32:26,237 --> 02:32:27,371 THEIR PETS AND HOME AND SOME OF 4316 02:32:27,438 --> 02:32:28,739 THESE KIDS ARE AWAY FROM THEIR 4317 02:32:28,806 --> 02:32:30,374 PETS FOR A VERY LONG TIME, SO WE 4318 02:32:30,441 --> 02:32:31,675 MAKE SURE WE FULFILL THAT NEED 4319 02:32:31,742 --> 02:32:33,677 WHENEVER WE CAN. 4320 02:32:33,744 --> 02:32:36,347 >> TONI. 4321 02:32:36,413 --> 02:32:38,949 >> THANKS, MISS LUCCA. 4322 02:32:39,016 --> 02:32:41,352 I AM INTERESTED IN TAKING A TOUR 4323 02:32:41,418 --> 02:32:43,420 OF THAT FACILITY. 4324 02:32:43,487 --> 02:32:48,025 RIGHT NOW, HOW MANY FAMILIES ARE 4325 02:32:48,092 --> 02:32:50,761 YOU ABLE TO HOUSE AND WITH THE 4326 02:32:50,828 --> 02:32:52,930 NEW SPACE, WHAT IS THIS -- 4327 02:32:52,997 --> 02:32:54,798 >> RIGHT NOW WE'RE ABLE TO 4328 02:32:54,865 --> 02:32:56,367 SUPPORT 60 FAMILIES AT THE INN 4329 02:32:56,433 --> 02:32:57,034 ON THIS CAMPUS. 4330 02:32:57,101 --> 02:32:58,636 WE ALSO HAVE THREE APARTMENTS IN 4331 02:32:58,702 --> 02:33:00,437 BETHESDA FOR KIDS WHO MIGHT BE 4332 02:33:00,504 --> 02:33:02,873 ON A TYPE OF ISOLATION THAT WE 4333 02:33:02,940 --> 02:33:04,141 CANNOT SUPPORT AT THE CHILDREN'S 4334 02:33:04,208 --> 02:33:05,442 INN OR THERE ARE SOME FAMILIES 4335 02:33:05,509 --> 02:33:07,177 THAT JUST PREFER TO BE IN THAT 4336 02:33:07,244 --> 02:33:07,611 ENVIRONMENT. 4337 02:33:07,678 --> 02:33:09,580 WHEN WE ARE DONE WITH THE 4338 02:33:09,647 --> 02:33:10,915 RENOVATION AND THE ADDITION, 4339 02:33:10,981 --> 02:33:12,116 PART OF THE RENOVATION IS 4340 02:33:12,182 --> 02:33:14,852 RIGHT-SIZING THE ROOMS, SO 4341 02:33:14,919 --> 02:33:17,254 OVERALL WITH THE KIND OF 4342 02:33:17,321 --> 02:33:18,889 SMALL -- WE CALL IT THE RABSON 4343 02:33:18,956 --> 02:33:20,958 HOUSE BECAUSE DR. RABSON USED TO 4344 02:33:21,025 --> 02:33:22,493 LIVE THERE, THE YOUNG ADULTS I 4345 02:33:22,560 --> 02:33:24,695 MENTIONED, WE WILL HAVE 71 ROOMS 4346 02:33:24,762 --> 02:33:25,963 AVAILABLE FOR FAMILIES. 4347 02:33:26,030 --> 02:33:26,931 >> WOW! 4348 02:33:26,997 --> 02:33:27,865 >> VERY EXCITING. 4349 02:33:27,932 --> 02:33:29,600 AND YOU CAN COME VISIT WHENEVER 4350 02:33:29,667 --> 02:33:30,568 YOU WOULD LIKE. 4351 02:33:30,634 --> 02:33:31,569 I WOULD LOVE THE OPPORTUNITY TO 4352 02:33:31,635 --> 02:33:32,870 SHOW YOU. 4353 02:33:32,937 --> 02:33:35,639 >> AND THE PET PROGRAM, YOU'RE 4354 02:33:35,706 --> 02:33:39,076 NOT KIDDING, THEY REALLY, REA 4355 02:33:39,143 --> 02:33:42,513 REALLY -- THEY ADD LIFE TO -- I 4356 02:33:42,580 --> 02:33:43,747 MEAN, REGARDLESS OF WHAT YOU'RE 4357 02:33:43,814 --> 02:33:45,849 GOING THROUGH, IT REALLY HELPS. 4358 02:33:45,916 --> 02:33:47,151 >> THAT'S RIGHT. 4359 02:33:47,217 --> 02:33:47,818 THAT'S RIGHT. 4360 02:33:47,885 --> 02:33:50,688 I CAN'T SAY ENOUGH ABOUT THE 4361 02:33:50,754 --> 02:33:52,089 THERAPEUTIC, EDUCATIONAL AND 4362 02:33:52,156 --> 02:33:54,658 RECREATIONAL PROGRAMS THAT WE DO 4363 02:33:54,725 --> 02:33:56,694 IN ADDITION TO LODGING. 4364 02:33:56,760 --> 02:33:58,395 THAT'S WHAT I THINK FAMILIES 4365 02:33:58,462 --> 02:33:59,563 REALLY GET EXCITED ABOUT AND YOU 4366 02:33:59,630 --> 02:34:00,831 SORT OF SAW AUTUMN TAKE 4367 02:34:00,898 --> 02:34:01,899 ADVANTAGE OF IN THE VIDEO AS 4368 02:34:01,966 --> 02:34:08,706 WELL. 4369 02:34:08,772 --> 02:34:10,307 >> OKAY, JENNIE, THANK YOU SO 4370 02:34:10,374 --> 02:34:10,908 VERY MUCH. 4371 02:34:10,975 --> 02:34:11,475 GREAT PRESENTATION. 4372 02:34:11,542 --> 02:34:11,809 >> THANK YOU. 4373 02:34:11,875 --> 02:34:15,112 >> WHEN HA IS THE CONSTRUCTION 4374 02:34:15,179 --> 02:34:15,879 GOING TO BE COMPLETED? 4375 02:34:15,946 --> 02:34:17,214 >> WHAT A GREAT QUESTION. 4376 02:34:17,281 --> 02:34:20,451 WE'RE HOPING FOR SUMMER 2027 4377 02:34:20,517 --> 02:34:20,751 DELIVERY. 4378 02:34:20,818 --> 02:34:21,952 THE RENOVATION WILL GO FIRST AND 4379 02:34:22,019 --> 02:34:22,586 THEN THE EXPANSION. 4380 02:34:22,653 --> 02:34:22,987 >> SUPER. 4381 02:34:23,053 --> 02:34:26,357 THANK YOU VERY MUCH. 4382 02:34:26,423 --> 02:34:34,031 DR. WIDEMANN. 4383 02:34:34,098 --> 02:34:35,566 >> JUST BECAUSE YOU SAW ONE OF 4384 02:34:35,633 --> 02:34:37,968 MY PATIENTS IN THE VIDEO, WHO 4385 02:34:38,035 --> 02:34:41,972 HAD A BIG DISFIGURING PLEXIFORM 4386 02:34:42,039 --> 02:34:43,007 NEUROFIBROMA WHEN SHE STARTED 4387 02:34:43,073 --> 02:34:43,641 TREATMENT. 4388 02:34:43,707 --> 02:34:46,777 THE MEK INHIBITOR WAS ACTUALLY 4389 02:34:46,844 --> 02:34:47,645 FDA-APPROVED BECAUSE IT DOES 4390 02:34:47,711 --> 02:34:48,846 SHRINK TUMORS AND APPEARS TO 4391 02:34:48,912 --> 02:34:51,081 PREVENT THEM FROM GROWING, BUT I 4392 02:34:51,148 --> 02:34:52,282 WANT TO LET YOU KNOW THE NEXT 4393 02:34:52,349 --> 02:34:53,917 STUDY THAT WE'LL BE DOING THAT 4394 02:34:53,984 --> 02:34:57,588 WE'LLWILL BE OPENING VERY SOON O 4395 02:34:57,655 --> 02:34:59,056 ACTUALLY TREAT PATIENTS, WE KNOW 4396 02:34:59,123 --> 02:35:01,425 THESE TUMORS GROW IN YOUNG KIDS, 4397 02:35:01,492 --> 02:35:04,194 AT A TIME WHEN THE TUMORS ARE 4398 02:35:04,261 --> 02:35:05,396 ASYMPTOMATIC AND WE WANT TO SEE 4399 02:35:05,462 --> 02:35:07,731 WILL THE MEK INHIBITOR PREVENT 4400 02:35:07,798 --> 02:35:08,966 THE DEVELOPMENT OF THE 4401 02:35:09,033 --> 02:35:09,833 DISFIGURING MORBIDITY BECAUSE 4402 02:35:09,900 --> 02:35:11,669 STARTING TREATMENT LATE WILL 4403 02:35:11,735 --> 02:35:13,303 SHRINK THE TUMOR SOME BUT NOT 4404 02:35:13,370 --> 02:35:15,139 TAKE THE MORBIDITY AWAY. 4405 02:35:15,205 --> 02:35:16,473 SO THAT STUDY WILL BE OPENING 4406 02:35:16,540 --> 02:35:16,874 SOON. 4407 02:35:16,940 --> 02:35:19,877 IT WILL BE KIDS LESS THAN 4408 02:35:19,943 --> 02:35:20,844 6 YEARS SO WE'LL DEFINITELY BE 4409 02:35:20,911 --> 02:35:22,613 ABLE TO SEE SOME. 4410 02:35:22,680 --> 02:35:23,914 SOME, WE MAY NOT BE ABLE TO SEE. 4411 02:35:23,981 --> 02:35:26,150 BUT I JUST THOUGHT I'LL 4412 02:35:26,216 --> 02:35:27,317 HIGHLIGHT THIS AND THE 4413 02:35:27,384 --> 02:35:28,652 CHILDREN'S INN REALLY HAS BEEN 4414 02:35:28,719 --> 02:35:29,953 INSTRUMENTAL FOR MANY OF MY 4415 02:35:30,020 --> 02:35:31,889 PATIENTS AND HOPEFULLY WE'LL SEE 4416 02:35:31,955 --> 02:35:33,323 THE YOUNGER KIDS SOON. 4417 02:35:33,390 --> 02:35:35,392 AND MAYBE BE ABLE TO DEMONSTRATE 4418 02:35:35,459 --> 02:35:37,561 THAT WE PREVENT THE 4419 02:35:37,628 --> 02:35:38,629 DISFIGUREMENT AND OTHER PROBLEMS 4420 02:35:38,696 --> 02:35:40,597 THAT COME FROM THESE TUMORS. 4421 02:35:40,664 --> 02:35:41,899 >> THANK YOU, DR. WIDEMANN. 4422 02:35:41,965 --> 02:35:45,369 APPRECIATE THAT. 4423 02:35:45,436 --> 02:35:45,836 ALL RIGHT. 4424 02:35:45,903 --> 02:35:47,838 WE ARE MOVING THROUGH THE 4425 02:35:47,905 --> 02:35:48,706 PROGRAM TODAY, THROUGH THE 4426 02:35:48,772 --> 02:35:50,908 AGENDA, AND WE'RE DOWN TO OUR 4427 02:35:50,974 --> 02:35:52,443 LAST PRESENTATION OF THIS 4428 02:35:52,509 --> 02:35:53,243 MEETING. 4429 02:35:53,310 --> 02:35:55,979 WE'VE GOT MR. DAN WHEELAND WITH 4430 02:35:56,046 --> 02:35:56,847 US, DIRECTOR OF THE OFFICE OF 4431 02:35:56,914 --> 02:35:57,915 RESEARCH FACILITIES AT THE NIH 4432 02:35:57,981 --> 02:35:59,249 OFFICE OF THE DIRECTOR. 4433 02:35:59,316 --> 02:36:01,151 AND HE'S A FAMILIAR PRESENTER TO 4434 02:36:01,218 --> 02:36:03,420 US BECAUSE THIS WILL BE DAN'S 4435 02:36:03,487 --> 02:36:04,888 SEVENTH ANNUAL PRESENTATION TO 4436 02:36:04,955 --> 02:36:05,456 THE BOARD. 4437 02:36:05,522 --> 02:36:07,891 HE WAS HERE EXACTLY ONE YEAR AGO 4438 02:36:07,958 --> 02:36:11,195 FOR THE FEBRUARY 2023 MEETING 4439 02:36:11,261 --> 02:36:12,930 AND SO WE APPRECIATE DAN KEEPING 4440 02:36:12,996 --> 02:36:15,466 US UPDATED REGULARLY ON BUILDING 4441 02:36:15,532 --> 02:36:17,000 FACILITIES AND NEW PROJECTS ON 4442 02:36:17,067 --> 02:36:18,969 CAMPUS, ESPECIALLY THOSE 4443 02:36:19,036 --> 02:36:19,803 INVOLVING THE CLINICAL CENTER 4444 02:36:19,870 --> 02:36:21,605 AND THIS NEW SKI CHALET THAT 4445 02:36:21,672 --> 02:36:21,972 YOU'RE BUILDING. 4446 02:36:22,039 --> 02:36:31,648 SO THANK YOU. 4447 02:36:31,715 --> 02:36:33,250 >> THANK YOU FOR THIS 4448 02:36:33,317 --> 02:36:33,917 OPPORTUNITY. 4449 02:36:33,984 --> 02:36:36,053 IT'S A REAL HONOR TO DO THIS. 4450 02:36:36,120 --> 02:36:37,354 WE'LL START OFF WITH SOME 4451 02:36:37,421 --> 02:36:38,455 ANNOUNCEMENTS REGARDING OUR 4452 02:36:38,522 --> 02:36:40,090 FUNDING PROFILE. 4453 02:36:40,157 --> 02:36:42,226 WE'VE CONTINUED TO ENGAGE WITH 4454 02:36:42,292 --> 02:36:43,460 CONGRESS ON A QUARTERLY BASIS 4455 02:36:43,527 --> 02:36:45,295 AND MEET WITH STAFF OF THE 4456 02:36:45,362 --> 02:36:47,931 SENATE AND HOUSE APPROPRIATIONS 4457 02:36:47,998 --> 02:36:49,299 SUBCOMMITTEE, AND AS A RESULT, 4458 02:36:49,366 --> 02:36:51,668 YOU'VE SEEN SOME INCREASES IN 4459 02:36:51,735 --> 02:36:52,770 OUR ANNUAL APPROPRIATIONS FOR 4460 02:36:52,836 --> 02:36:56,940 BUILDINGS AND FACILITIES. 4461 02:36:57,007 --> 02:36:58,075 CURRENTLY WE'RE OF COURSE IN A 4462 02:36:58,142 --> 02:36:58,642 CONTINUING RESOLUTION. 4463 02:36:58,709 --> 02:37:01,879 WE'RE HOPING THAT WHEN AN 4464 02:37:01,945 --> 02:37:03,113 APPROPRIATION IS PASSED, THAT WE 4465 02:37:03,180 --> 02:37:06,016 SUSTAIN OR IMPROVE UPON THOSE 4466 02:37:06,083 --> 02:37:09,286 INCREASES. 4467 02:37:09,353 --> 02:37:10,287 ALSO SINCE WE DEVELOPED THIS 4468 02:37:10,354 --> 02:37:12,456 SLIDE, WE ACTUALLY RECEIVED THE 4469 02:37:12,523 --> 02:37:15,692 FUNDING, THE SO-CALLED NEF 4470 02:37:15,759 --> 02:37:17,528 FUNDING, SO WE RECEIVED IN THIS 4471 02:37:17,594 --> 02:37:19,963 IS FISCAL YEAR AN ADDITIONAL 4472 02:37:20,030 --> 02:37:21,732 $120 MILLION FOR FIVE PROJECTS 4473 02:37:21,799 --> 02:37:22,633 LISTED THERE. 4474 02:37:22,699 --> 02:37:26,103 THE FIRST THREE HAVE DIRECT OR 4475 02:37:26,170 --> 02:37:27,571 INDIRECT BENEFITS TO THE 4476 02:37:27,638 --> 02:37:30,307 BUILDING 10 COLLECTION COMPLEX. 4477 02:37:30,374 --> 02:37:31,008 10 COMPLEX. 4478 02:37:31,074 --> 02:37:32,876 A PROJECT THAT I BRIEFED YOU ON 4479 02:37:32,943 --> 02:37:37,381 A YEAR AGO, THE PHARMACY 4480 02:37:37,447 --> 02:37:38,582 INTRAVENOUS ADMIXTURE UNIT 4481 02:37:38,649 --> 02:37:40,784 SUFFERED A SIGNIFICANT SETBACK. 4482 02:37:40,851 --> 02:37:43,020 WE TESTED THE PASSTHROUGH UNITS 4483 02:37:43,086 --> 02:37:46,390 AND DETERMINED THAT THEY WERE 4484 02:37:46,456 --> 02:37:47,724 NONCOMPLIANT AND THEY WOULD 4485 02:37:47,791 --> 02:37:49,693 BECOME A MAINTENANCE NIGHTMARE, 4486 02:37:49,760 --> 02:37:53,063 AND SO WE BIT THE BULLET, SO TO 4487 02:37:53,130 --> 02:37:55,699 SPEAK, AND REPLACED ALL 24 OF 4488 02:37:55,766 --> 02:37:58,035 THOSE, AND THEY'VE NOW BEEN 4489 02:37:58,101 --> 02:37:59,036 INSTALLED, AND SO NOW WE'RE 4490 02:37:59,102 --> 02:38:04,074 GEARING UP AGAIN WITH THOSE 4491 02:38:04,141 --> 02:38:05,042 FINAL STEPS LISTED AT THE BOTTOM 4492 02:38:05,108 --> 02:38:08,712 OF THIS SLIDE TO QUALIFY THIS 4493 02:38:08,779 --> 02:38:10,914 SPACE, CONDUCT AIR VISUALIZATION 4494 02:38:10,981 --> 02:38:12,182 STUDIES TO UNDERGO THE 4495 02:38:12,249 --> 02:38:14,618 ENVIRONMENTAL MONITORING AND 4496 02:38:14,685 --> 02:38:15,886 PERFORMANCE QUALIFICATION, AND 4497 02:38:15,953 --> 02:38:18,388 THEN OUR GOAL IS TO BRING THE 4498 02:38:18,455 --> 02:38:20,023 FACILITY TO THE STERILE PRODUCTS 4499 02:38:20,090 --> 02:38:22,659 FOR HUMAN ADMINISTRATION 4500 02:38:22,726 --> 02:38:25,128 COMMITTEE IN NOVEMBER, AND 4501 02:38:25,195 --> 02:38:27,431 ASSUMING APPROVAL, ACTIVATE THE 4502 02:38:27,497 --> 02:38:30,067 FACILITY. 4503 02:38:30,133 --> 02:38:33,203 ANOTHER EXCITING PROJECT THAT'S 4504 02:38:33,270 --> 02:38:34,571 EMBLEMATIC OF THE RESEARCH 4505 02:38:34,638 --> 02:38:37,741 THAT'S CONDUCTED HERE IS THE 4506 02:38:37,808 --> 02:38:39,376 RADIOPHARMACY AND CELL LABELING 4507 02:38:39,443 --> 02:38:39,843 FACILITY. 4508 02:38:39,910 --> 02:38:42,646 THIS IS APPROXIMATELY 4509 02:38:42,713 --> 02:38:46,149 $30 MILLION WORTH OF INVESTMENT, 4510 02:38:46,216 --> 02:38:48,652 AND THE DESIGN HAS BEEN 4511 02:38:48,719 --> 02:38:50,420 COMPLETED, THE CONSTRUCTION 4512 02:38:50,487 --> 02:38:52,456 CONTRACT HAS BEEN AWARDED AND 4513 02:38:52,522 --> 02:38:56,393 THE CONTRACTOR HAS MOBILIZED AND 4514 02:38:56,460 --> 02:38:57,561 OUR GOAL IS TO COMPLETE THE 4515 02:38:57,628 --> 02:39:02,566 FACILITY IN MAY OF 2025. 4516 02:39:02,633 --> 02:39:04,534 WE'RE ALSO INVESTING IN STERILE 4517 02:39:04,601 --> 02:39:06,603 PROCESSING UPGRADES, AND THIS IS 4518 02:39:06,670 --> 02:39:08,372 A PHASED PROJECT WHERE FIRST WE 4519 02:39:08,438 --> 02:39:10,440 COMPLETED WORK ON THE -- IN THE 4520 02:39:10,507 --> 02:39:13,443 BASEMENT OF BUILDING 10, AND 4521 02:39:13,510 --> 02:39:14,978 SINCE WE DEVELOPED THIS SLIDE, 4522 02:39:15,045 --> 02:39:16,546 THAT WORK HAS BEEN COMPLETED, SO 4523 02:39:16,613 --> 02:39:19,216 THE FUNCTION IS NOW IN THE 4524 02:39:19,283 --> 02:39:21,718 BASEMENT, THIS FREEZES UP TO 4525 02:39:21,785 --> 02:39:26,356 CFREEZE -- THISFREES US UP TO RN 4526 02:39:26,423 --> 02:39:27,491 THE SECOND FLOOR SO WE'LL HAVE 4527 02:39:27,557 --> 02:39:28,759 THIS SQUARED AWAY ESTIMATED IN 4528 02:39:28,825 --> 02:39:31,261 NOVEMBER OF 2024. 4529 02:39:31,328 --> 02:39:32,996 I'VE BRIEFED THIS BOARD BEFORE 4530 02:39:33,063 --> 02:39:37,367 REGARDING THE BUILDING 10 E 4531 02:39:37,434 --> 02:39:38,568 WING, WHICH IS A RENOVATION FROM 4532 02:39:38,635 --> 02:39:40,137 LEVELS B2 ALL THE WAY UP TO THE 4533 02:39:40,203 --> 02:39:43,240 ROOF, SO MORE THAN 15 FLOORS 4534 02:39:43,307 --> 02:39:44,675 WORTH OF RENOVATION. 4535 02:39:44,741 --> 02:39:48,145 THIS WILL BE THE PRIMARY HOME 4536 02:39:48,211 --> 02:39:49,012 FOR THE DEPARTMENT OF 4537 02:39:49,079 --> 02:39:53,917 TRANSFUSION MEDICINE, AND THIS 4538 02:39:53,984 --> 02:39:56,420 MONTH WE ARE GOING TO CONTINUE 4539 02:39:56,486 --> 02:39:58,288 OCCUPANCY AND WE ANTICIPATE BY 4540 02:39:58,355 --> 02:40:00,023 SOMETIME NEXT MONTH WE'LL HAVE 4541 02:40:00,090 --> 02:40:02,392 ALL OF THE FLOORS OCCUPIED 4542 02:40:02,459 --> 02:40:06,196 EXCEPT FOR THE CGMP SPACE, WHERE 4543 02:40:06,263 --> 02:40:08,298 THAT ENTIRE FLOOR, THE 12TH 4544 02:40:08,365 --> 02:40:10,667 FLOOR, IS DEVOTED TO CELL 4545 02:40:10,734 --> 02:40:10,901 THERAPY. 4546 02:40:10,968 --> 02:40:14,271 IT WILL BE OUR LARGEST ASEPTIC 4547 02:40:14,338 --> 02:40:16,907 PROCESSING FACILITY, COMPLETE 4548 02:40:16,974 --> 02:40:19,576 WITH STATE OF THE ART CLEAN 4549 02:40:19,643 --> 02:40:19,776 ROOMS. 4550 02:40:19,843 --> 02:40:22,312 THAT, TOO, WILL HAVE PASSTHROUGH 4551 02:40:22,379 --> 02:40:23,647 UNITS, BUT THOSE ARE 4552 02:40:23,714 --> 02:40:26,483 MANUFACTURED BY THE SAME FIRM 4553 02:40:26,550 --> 02:40:27,851 THAT RECENTLY CONSTRUCTED THE 4554 02:40:27,918 --> 02:40:29,419 NEW ONES FOR THE IVAU. 4555 02:40:29,486 --> 02:40:33,056 SO WE'LL UNDERGO A VERY 4556 02:40:33,123 --> 02:40:34,291 IMPORTANT AND THOROUGH 4557 02:40:34,358 --> 02:40:36,927 VALIDATION PROCESS FOR THAT 4558 02:40:36,994 --> 02:40:37,627 FACILITY. 4559 02:40:37,694 --> 02:40:38,895 THIS NEXT SLIDE IS SIMPLY A 4560 02:40:38,962 --> 02:40:40,097 CROSS-SECTION THAT SHOWS THE 4561 02:40:40,163 --> 02:40:42,499 OCCUPANCY BY FLOOR AND THE 4562 02:40:42,566 --> 02:40:44,634 CLINICAL CENTER RELATED SPACE 4563 02:40:44,701 --> 02:40:51,208 SHOWN IN GREEN FONT. 4564 02:40:51,274 --> 02:40:52,576 THE CENTER FOR CELLULAR 4565 02:40:52,642 --> 02:40:54,911 ENGINEERING PROJECT IS ANOTHER 4566 02:40:54,978 --> 02:40:55,879 PROJECT THAT'S BEEN STRUGGLING. 4567 02:40:55,946 --> 02:41:01,551 WE HAD SOME PROBLEMS WITH 4568 02:41:01,618 --> 02:41:02,152 MAINTAINING A STATE OF CONTROL 4569 02:41:02,219 --> 02:41:06,423 WHEN WE LOSE ELECTRICAL POWER, 4570 02:41:06,490 --> 02:41:08,058 AND WE SUBJECT THE FACILITY TO 4571 02:41:08,125 --> 02:41:09,559 MONTHLY GENERATOR TESTS AND WE 4572 02:41:09,626 --> 02:41:10,861 TRANSITION FROM NORMAL TO 4573 02:41:10,927 --> 02:41:13,697 EMERGENCY BACK TO NORMAL POWER, 4574 02:41:13,764 --> 02:41:15,699 AND THE DIFFERENTIAL PRESSURES 4575 02:41:15,766 --> 02:41:16,867 WEREN'T CONDUCTED -- THEY 4576 02:41:16,933 --> 02:41:17,801 WEREN'T FUNCTIONING PROPERLY SO 4577 02:41:17,868 --> 02:41:21,171 WE INVESTED IN AN 4578 02:41:21,238 --> 02:41:23,840 UNINTERRUPTIBLE POWER SYSTEM TO 4579 02:41:23,907 --> 02:41:28,879 ESSENTIALLY KEEP THAT FACILITY 4580 02:41:28,945 --> 02:41:30,580 UNAWARE, IF YOU WILL, OR 4581 02:41:30,647 --> 02:41:31,982 UNAFFECTED BY THOSE POWER 4582 02:41:32,049 --> 02:41:34,918 ISSUES. 4583 02:41:34,985 --> 02:41:36,787 AND WE'RE GOING TO BE DOING SOME 4584 02:41:36,853 --> 02:41:38,088 IMPORTANT TESTING STARTING THIS 4585 02:41:38,155 --> 02:41:43,627 EVENING INTO TOMORROW TO ENSURE 4586 02:41:43,693 --> 02:41:46,163 THAT THIS FACILITY NOW OPERATES 4587 02:41:46,229 --> 02:41:47,464 WITH THAT UPS SYSTEM. 4588 02:41:47,531 --> 02:41:51,968 WE WILL GET IT RIGHT. 4589 02:41:52,035 --> 02:41:53,737 OUR LARGEST PROJECT ACTUALLY IN 4590 02:41:53,804 --> 02:41:55,939 THE HISTORY OF NIH DOLLAR-WISE 4591 02:41:56,006 --> 02:41:58,909 IS THE SRLM PROJECT, A PROJECT 4592 02:41:58,975 --> 02:41:59,910 THAT WAS BOOSTED WITH A LETTER 4593 02:41:59,976 --> 02:42:01,645 THAT THIS COMMITTEE SENT OFF AND 4594 02:42:01,711 --> 02:42:03,346 WE REALLY APPRECIATE YOUR 4595 02:42:03,413 --> 02:42:06,083 SUPPORT. 4596 02:42:06,149 --> 02:42:08,518 WE CONTINUE TO MAKE SOME 4597 02:42:08,585 --> 02:42:09,319 SUBSTANTIAL PROGRESS SINCE WE 4598 02:42:09,386 --> 02:42:11,588 LAST BRIEFED YOU. 4599 02:42:11,655 --> 02:42:13,824 US A MAY RECALL, THERE ARE FIVE 4600 02:42:13,890 --> 02:42:15,826 PHASES TO PROJECT. 4601 02:42:15,892 --> 02:42:19,229 PHASE ZERO WAS A PREPARATORY 4602 02:42:19,296 --> 02:42:21,098 PHASE TO GET EVERYTHING READY SO 4603 02:42:21,164 --> 02:42:22,165 WE MINIMIZE THE DISRUPTION TO 4604 02:42:22,232 --> 02:42:23,767 THE REST OF THE CAMPUS. 4605 02:42:23,834 --> 02:42:25,402 WE ESSENTIALLY ENCLAVED THE SITE 4606 02:42:25,469 --> 02:42:28,605 OFF SO THAT WE DON'T HAVE 4607 02:42:28,672 --> 02:42:30,707 CROSS-CONTAMINATION, IF YOU 4608 02:42:30,774 --> 02:42:32,509 WILL, FROM A NUMBER OF 4609 02:42:32,576 --> 02:42:34,778 PERSPECTIVES, SAFETY, SECURITY. 4610 02:42:34,845 --> 02:42:37,547 WE HAVE A CHILD CARE CENTER, WE 4611 02:42:37,614 --> 02:42:42,519 HAVE A FIRE STATION, WE HAVE THE 4612 02:42:42,586 --> 02:42:43,587 SAFFER FAMILY LODGE SO WE TOOK 4613 02:42:43,653 --> 02:42:46,590 CARE OF ALL OF THOSE 4614 02:42:46,656 --> 02:42:47,257 INTERDEPENDENCIES AND NOW WE'RE 4615 02:42:47,324 --> 02:42:49,226 IN PHASE ONE, WHICH IS 4616 02:42:49,292 --> 02:42:52,829 CONSTRUCTION OF THE SITE 4617 02:42:52,896 --> 02:42:57,200 UTILITIES, AND WE HAVE TO -- WE 4618 02:42:57,267 --> 02:42:59,169 HAD TO REMOVE A UTILITY TUNNEL 4619 02:42:59,236 --> 02:43:01,538 THAT WAS ONCE PRESENT AND WE ARE 4620 02:43:01,605 --> 02:43:04,908 NOW ON THE VERGE OF, NEXT MONTH, 4621 02:43:04,975 --> 02:43:06,076 COMPLETING THE INSTALLATION OF 4622 02:43:06,143 --> 02:43:08,278 THE FOUNDATION PILES. 4623 02:43:08,345 --> 02:43:09,913 THAT WILL THEN ENABLE US TO 4624 02:43:09,980 --> 02:43:12,616 CONSTRUCT THE ADDITION, AND ONCE 4625 02:43:12,682 --> 02:43:14,451 THE ADDITION IS COMPLETE, WE 4626 02:43:14,518 --> 02:43:17,854 MOVE THE NATIONAL CANCER 4627 02:43:17,921 --> 02:43:19,990 INSTITUTE OUT OF FLOORS 1 AND 4628 02:43:20,056 --> 02:43:23,160 3 SO WE CAN THEN UTILIZE THE SUM 4629 02:43:23,226 --> 02:43:25,128 OF THE EXISTING SPACE IN THE 4630 02:43:25,195 --> 02:43:29,332 ADDITION TO PUT RADIOLOGY ON THE 4631 02:43:29,399 --> 02:43:31,101 FIRST FLOOR IN CONTIGUOUS SPACE 4632 02:43:31,168 --> 02:43:33,069 AND SURGERY ON THE THIRD FLOOR 4633 02:43:33,136 --> 02:43:36,039 IN CONTIGUOUS SPACE, AVOIDING 4634 02:43:36,106 --> 02:43:36,973 FRAGMENTING THOSE IMPORTANT 4635 02:43:37,040 --> 02:43:37,407 PROGRAMS. 4636 02:43:37,474 --> 02:43:39,843 SO WE'VE GOT SOME TIME LAPSE 4637 02:43:39,910 --> 02:43:40,677 PHOTOGRAPHS THAT SORT OF TAKE 4638 02:43:40,744 --> 02:43:42,112 YOU BACK IN TIME. 4639 02:43:42,179 --> 02:43:45,582 THIS IS ESSENTIALLY WHEN WE 4640 02:43:45,649 --> 02:43:47,851 MOBILIZED AND BEGAN SOME OF THIS 4641 02:43:47,918 --> 02:43:49,519 PREPARATORY WORK, AND THEN YOU 4642 02:43:49,586 --> 02:43:53,156 CAN SEE THAT EXCAVATION BEGAN 4643 02:43:53,223 --> 02:43:54,824 AND WE WERE DEMOLISHING THE 4644 02:43:54,891 --> 02:43:55,292 UTILITY TUNNEL. 4645 02:43:55,358 --> 02:43:57,127 THIS SHOWS THE UTILITY TUNNEL 4646 02:43:57,194 --> 02:43:58,828 HAVING BEEN DEMOLISHED AND THE 4647 02:43:58,895 --> 02:44:00,463 DEBRIS IS BEING REMOVED. 4648 02:44:00,530 --> 02:44:04,201 NOW YOU START TO SEE SOME CRANES 4649 02:44:04,267 --> 02:44:09,272 AND DRILLING RIGS, AND YOU CAN 4650 02:44:09,339 --> 02:44:10,740 SEE THAT IN THE BACKGROUND, 4651 02:44:10,807 --> 02:44:13,109 THERE'S THE RIG DRILLING 60-FOOT 4652 02:44:13,176 --> 02:44:18,281 DEEP FOUNDATION PILES. 4653 02:44:18,348 --> 02:44:19,549 SO LOTS OF REALLY POSITIVE 4654 02:44:19,616 --> 02:44:27,657 PROGRESS REGARDING THE SLRM. 4655 02:44:27,724 --> 02:44:33,263 THERE ARE MISCELLANEOUS PROJECTS 4656 02:44:33,330 --> 02:44:34,798 WE'RE DOING FOR THE ENVIRONMENT 4657 02:44:34,864 --> 02:44:35,098 OF CARE. 4658 02:44:35,165 --> 02:44:36,566 AS YOU CAN SEE AS AN EXAMPLE 4659 02:44:36,633 --> 02:44:38,101 WE'RE REFRESHING OUTPATIENT EXAM 4660 02:44:38,168 --> 02:44:40,837 ROOMS ON FLOORS 7 AND 9. 4661 02:44:40,904 --> 02:44:42,005 WE'RE REFRESHING PUBLIC 4662 02:44:42,072 --> 02:44:43,206 RESTROOMS AND PATIENT ROOMS. 4663 02:44:43,273 --> 02:44:46,142 ANOTHER EXCITING PROGRAM IS 4664 02:44:46,209 --> 02:44:49,312 WE'RE CONVERTING AN 4665 02:44:49,379 --> 02:44:50,113 UNDERUTILIZED CAFETERIA ON THE 4666 02:44:50,180 --> 02:44:51,381 SECOND FLOOR TO A CENTER FOR 4667 02:44:51,448 --> 02:44:53,149 ALZHEIMER'S AND RELATED 4668 02:44:53,216 --> 02:44:54,251 DEMENTIAS OUTPATIENT CLINIC, 4669 02:44:54,317 --> 02:44:55,785 WHICH WILL COMPLEMENT THEIR 4670 02:44:55,852 --> 02:44:57,454 BASIC RESEARCH CAPABILITY THAT 4671 02:44:57,520 --> 02:44:59,556 WAS CONSTRUCTED A FEW YEARS AGO. 4672 02:44:59,623 --> 02:45:02,459 AND WE'LL ALSO PROVIDE SOME 4673 02:45:02,525 --> 02:45:03,860 SPACE FOR THE EYE INSTITUTE, THE 4674 02:45:03,927 --> 02:45:05,395 HEART, LUNG AND BLOOD INSTITUTE, 4675 02:45:05,462 --> 02:45:07,097 AS WELL AS MINORITY HEALTH, AND 4676 02:45:07,163 --> 02:45:09,099 SO THIS IS A REALLY EXCITING 4677 02:45:09,165 --> 02:45:10,700 OPPORTUNITY TO REPURPOSE 4678 02:45:10,767 --> 02:45:14,471 OTHERWISE UNDERUTILIZED SPACE. 4679 02:45:14,537 --> 02:45:16,172 THIS IS ABOUT A $20 MILLION 4680 02:45:16,239 --> 02:45:17,274 INVESTMENT. 4681 02:45:17,340 --> 02:45:18,475 WE'RE ALSO UPGRADING NURSE 4682 02:45:18,541 --> 02:45:18,975 STATIONS. 4683 02:45:19,042 --> 02:45:20,877 AS YOU CAN SEE. 4684 02:45:20,944 --> 02:45:24,447 WE'RE ALSO RENOVATING THE PACU 4685 02:45:24,514 --> 02:45:27,083 AND PRE-OP AREAS. 4686 02:45:27,150 --> 02:45:29,452 THIS PROJECT ENCOUNTERED SOME 4687 02:45:29,519 --> 02:45:32,289 UNFORESEEN CONDITIONS, BUT WE'RE 4688 02:45:32,355 --> 02:45:33,523 ALMOST DONE. 4689 02:45:33,590 --> 02:45:35,792 WE ANTICIPATE HAVING COMPLETION 4690 02:45:35,859 --> 02:45:40,263 OCCUR IN MARCH. 4691 02:45:40,330 --> 02:45:41,564 THIS IS NOT NECESSARILY A 4692 02:45:41,631 --> 02:45:43,099 CAPITAL IMPROVEMENT, BUT IT'S 4693 02:45:43,166 --> 02:45:45,302 SOMETHING THAT WE THOUGHT 4694 02:45:45,368 --> 02:45:46,102 NOTEWORTHY. 4695 02:45:46,169 --> 02:45:49,939 IN AUGUST OF 2011, WE 4696 02:45:50,006 --> 02:45:51,675 EXPERIENCED IN BETHESDA A 4697 02:45:51,741 --> 02:45:55,845 SUBSTANTIAL EARTHQUAKE THAT HAD 4698 02:45:55,912 --> 02:45:57,347 ITS EPICENTER IN MINERAL, 4699 02:45:57,414 --> 02:45:57,881 VIRGINIA. 4700 02:45:57,947 --> 02:45:59,849 I WAS BASICALLY CLUELESS AS TO 4701 02:45:59,916 --> 02:46:00,617 WHAT TO DO. 4702 02:46:00,684 --> 02:46:03,086 I REMEMBER STANDING ON THE STEPS 4703 02:46:03,153 --> 02:46:04,854 OF BUILDING 1 WITH DR. TABAK. 4704 02:46:04,921 --> 02:46:06,423 WE STILL HAD BLACKBERRIES AT THE 4705 02:46:06,489 --> 02:46:07,123 TIME. 4706 02:46:07,190 --> 02:46:10,493 WE WERE SENDING MESSAGES OUT. 4707 02:46:10,560 --> 02:46:14,197 THERE WAS SIGNIFICANT CHAOS. 4708 02:46:14,264 --> 02:46:15,732 AND SO AS A RESULT OF THAT, WE 4709 02:46:15,799 --> 02:46:17,033 SAID WE HAVE TO BE MORE 4710 02:46:17,100 --> 02:46:20,737 PREPARED, SO WE WORKED WITH THE 4711 02:46:20,804 --> 02:46:24,007 USGS AND IN 2015, HAD TWO STRONG 4712 02:46:24,074 --> 02:46:26,710 MOTION SENSORS INSTALLED IN THE 4713 02:46:26,776 --> 02:46:29,646 VICINITY OF THE HOSPITAL, AN WE 4714 02:46:29,713 --> 02:46:32,048 CONDUCTED IN PARALLEL A 4715 02:46:32,115 --> 02:46:34,484 STRUCTURAL ANALYSIS OF THE 4716 02:46:34,551 --> 02:46:37,487 CLINICAL RESEARCH CENTER, AND SO 4717 02:46:37,554 --> 02:46:40,990 NOW WE WILL BE ABLE TO TELL IN 4718 02:46:41,057 --> 02:46:43,993 VERY SHORT ORDER WHAT THE 4719 02:46:44,060 --> 02:46:46,363 IMMEDIATE GROUND PEAK 4720 02:46:46,429 --> 02:46:47,297 ACCELERATION WAS AND COMPARE 4721 02:46:47,364 --> 02:46:53,103 THAT WITH THE CAPACITY OF THE 4722 02:46:53,169 --> 02:46:54,738 CRC. 4723 02:46:54,804 --> 02:46:56,473 BY DOING THAT, WE CAN MAKE MORE 4724 02:46:56,539 --> 02:46:57,607 INFORMED DETERMINATIONS AS TO IS 4725 02:46:57,674 --> 02:46:59,175 THERE A LOW, MEDIUM OR HIGH 4726 02:46:59,242 --> 02:47:01,044 LIKELIHOOD THAT WE HAVE TO 4727 02:47:01,111 --> 02:47:03,847 EVACUATE PATIENTS. 4728 02:47:03,913 --> 02:47:06,249 THIS IS TIMELY BECAUSE WE HAD AN 4729 02:47:06,316 --> 02:47:08,017 EARTHQUAKE NOT THAT LONG AGO IF 4730 02:47:08,084 --> 02:47:10,320 ROCKVILLE, MARYLAND, ALTHOUGH IT 4731 02:47:10,387 --> 02:47:11,588 WASN'T FELT HEAVILY HERE, AND AS 4732 02:47:11,654 --> 02:47:13,556 THE LAST BULLET INDICATES, THE 4733 02:47:13,623 --> 02:47:17,494 USGS REVEALED ITS LATEST 4734 02:47:17,560 --> 02:47:18,561 NATIONAL SEISMIC HAZARD MODEL 4735 02:47:18,628 --> 02:47:19,863 AND THERE WERE NOTEWORTHY 4736 02:47:19,929 --> 02:47:22,532 CHANGES IN THE NEW MODEL 4737 02:47:22,599 --> 02:47:24,801 RELATIVE TO THE ATLANTIC COASTAL 4738 02:47:24,868 --> 02:47:25,201 CORRIDOR. 4739 02:47:25,268 --> 02:47:26,469 ONE OF THE THINGS THAT SURPRISED 4740 02:47:26,536 --> 02:47:27,637 ME WHEN I STARTED LOOKING INTO 4741 02:47:27,704 --> 02:47:31,241 THIS IS THAT WHILE THE FREQUENCY 4742 02:47:31,307 --> 02:47:32,876 OF EARTHQUAKES IS GREATER ON THE 4743 02:47:32,942 --> 02:47:35,478 WEST COAST, THE NATURE OF THE 4744 02:47:35,545 --> 02:47:39,249 SUBSURFACE GEOLOGY IS 4745 02:47:39,315 --> 02:47:40,316 SIGNIFICANTLY DIFFERENT. 4746 02:47:40,383 --> 02:47:42,118 SO IN ESSENCE, AS I UNDERSTAND 4747 02:47:42,185 --> 02:47:44,954 IT, I'M NOT A SEISMOLOGIST, BUT 4748 02:47:45,021 --> 02:47:46,589 AN EARTHQUAKE WILL PROPAGATE 4749 02:47:46,656 --> 02:47:47,557 FURTHER ON THE EAST COAST 4750 02:47:47,624 --> 02:47:50,627 BECAUSE OF THE ROCKY SUBSURFACE 4751 02:47:50,693 --> 02:47:53,430 CONDITIONS, SO THE MINERAL, 4752 02:47:53,496 --> 02:47:54,831 VIRGINIA EARTHQUAKE PROPAGATED 4753 02:47:54,898 --> 02:47:57,734 QUITE A SIGNIFICANT DISTANCE. 4754 02:47:57,801 --> 02:47:59,803 WHERE AN EQUIVALENT EARTHQUAKE 4755 02:47:59,869 --> 02:48:01,171 ON THE WEST COAST MIGHT NOT HAVE 4756 02:48:01,237 --> 02:48:03,273 BEEN FELT AT SUCH A DISTANCE. 4757 02:48:03,339 --> 02:48:08,745 SO IN ESSENCE, THIS BOILS DOWN 4758 02:48:08,812 --> 02:48:12,749 TO THE FAR RIGHT VALUES ARE THE 4759 02:48:12,816 --> 02:48:15,485 DECIMAL PERCENTAGE OF THE 4760 02:48:15,552 --> 02:48:17,987 GRAVITATIONAL ACCELERATION, AND 4761 02:48:18,054 --> 02:48:20,890 SO NOW WE HAVE AN ABILITY TO 4762 02:48:20,957 --> 02:48:24,327 READ THESE MONITORS AND 4763 02:48:24,394 --> 02:48:25,595 DETERMINE, FOR EXAMPLE, IF THE 4764 02:48:25,662 --> 02:48:26,596 PEAK GROUND ACCELERATION IS 4765 02:48:26,663 --> 02:48:29,732 LOWER THAN .05G, THEN WE HAVE A 4766 02:48:29,799 --> 02:48:32,469 HIGH DEGREE OF CONFIDENCE THAT 4767 02:48:32,535 --> 02:48:35,505 THE CRC WILL WITHSTAND THAT WITH 4768 02:48:35,572 --> 02:48:36,840 NO STRUCTURAL DAMAGE. 4769 02:48:36,906 --> 02:48:38,475 WE'LL STILL DEPLOY OUR SITE 4770 02:48:38,541 --> 02:48:41,110 ASSESSMENT TEAMS TO LOOK AT 4771 02:48:41,177 --> 02:48:42,579 UTILITIES TO SEE IF SOMETHING 4772 02:48:42,645 --> 02:48:44,814 FELL OFF SHELVES AND WE WILL 4773 02:48:44,881 --> 02:48:46,950 VERIFY THE CONDITION OF THE 4774 02:48:47,016 --> 02:48:47,951 STRUCTURE, BUT AT LEAST WE HAVE 4775 02:48:48,017 --> 02:48:50,987 A MUCH BETTER IDEA OF WHAT WE'RE 4776 02:48:51,054 --> 02:48:54,591 UP AGAINST. 4777 02:48:54,657 --> 02:48:55,992 TURNING BACK TO CAPITAL 4778 02:48:56,059 --> 02:48:58,661 PROJECTS, ANOTHER PROJECT THAT 4779 02:48:58,728 --> 02:49:00,663 IS ABSOLUTELY INDISPENSABLE TO 4780 02:49:00,730 --> 02:49:05,068 THE ENVIRONMENT OF CARE IS THE 4781 02:49:05,134 --> 02:49:07,570 ELECTRICAL INFRASTRUCTURE. 4782 02:49:07,637 --> 02:49:08,872 THE CURRENT INFRASTRUCTURE IS 4783 02:49:08,938 --> 02:49:10,106 OUTDATED AND IT DIFFICULT TO 4784 02:49:10,173 --> 02:49:11,174 FIND REPAIR PARTS SO WE'RE 4785 02:49:11,241 --> 02:49:13,843 INVESTING ABOUT $80 MILLION IN 4786 02:49:13,910 --> 02:49:17,347 THIS NEW FACILITY, WHICH WILL BE 4787 02:49:17,413 --> 02:49:18,515 HARDENED, THE STRUCTURE WILL BE 4788 02:49:18,581 --> 02:49:23,286 VERY ROBUST, AND WE'LL HAVE NEW 4789 02:49:23,353 --> 02:49:24,954 GENERATORS AND FUEL TANKS, NEW 4790 02:49:25,021 --> 02:49:26,122 SWITCH GEAR THAT WILL BENEFIT 4791 02:49:26,189 --> 02:49:28,391 THE ENTIRETY OF THE BUILDING 10 4792 02:49:28,458 --> 02:49:29,492 COMPLEX. 4793 02:49:29,559 --> 02:49:31,094 AND WITHOUT THIS, WE WOULD NOT 4794 02:49:31,160 --> 02:49:32,295 HAVE HAD SUFFICIENT POWER TO 4795 02:49:32,362 --> 02:49:37,000 PROVIDE POWER TO THE SRLM. 4796 02:49:37,066 --> 02:49:38,701 ANOTHER PROJECT THAT'S SORT OF 4797 02:49:38,768 --> 02:49:39,869 BEHIND THE CURTAIN BUT IMPORTANT 4798 02:49:39,936 --> 02:49:41,471 IS WHAT WE CALL THE BLACK START 4799 02:49:41,538 --> 02:49:45,074 OF OUR COGENERATION PLANT. 4800 02:49:45,141 --> 02:49:46,943 IN ESSENCE, WE DO HAVE A 4801 02:49:47,010 --> 02:49:48,244 COGENERATION PLANT NOW THAT 4802 02:49:48,311 --> 02:49:49,546 BYRNES NATURAL GAS AND GENERATES 4803 02:49:49,612 --> 02:49:53,182 LEELECTRICITY AND STEAM BUT IT S 4804 02:49:53,249 --> 02:49:55,451 NOT DESIGNED TO OPERATE 4805 02:49:55,518 --> 02:49:56,519 AUTONOMOUSLY, THAT IS, IN THE 4806 02:49:56,586 --> 02:49:59,455 ABSENCE OF COMMERCIAL POWER, IT, 4807 02:49:59,522 --> 02:50:03,726 TOO, WOULD BE INOPERABLE. 4808 02:50:03,793 --> 02:50:07,330 THIS PROJECT MAKES THE COGEN 4809 02:50:07,397 --> 02:50:09,365 PLANT AUTONOMOUS AND COULD 4810 02:50:09,432 --> 02:50:10,133 OPERATE AS LONG AS WE HAVE 4811 02:50:10,199 --> 02:50:12,335 NATURAL GAS TO POWER IT, WE CAN 4812 02:50:12,402 --> 02:50:16,673 GENERATE 23 MEGAWATTS OF POWER. 4813 02:50:16,739 --> 02:50:18,007 AND THEN WE CAN GENERATE -- WE 4814 02:50:18,074 --> 02:50:20,276 CAN UTILIZE THAT POWER TO 4815 02:50:20,343 --> 02:50:21,377 GENERATE CHILLED WATER AND 4816 02:50:21,444 --> 02:50:23,546 STEAM. 4817 02:50:23,613 --> 02:50:24,747 THERE IS A CAVEAT TO THIS THAT 4818 02:50:24,814 --> 02:50:27,383 AS WE SPEAK, WE COULD USE THIS 4819 02:50:27,450 --> 02:50:32,822 TO GENERATE STEAM IN OUR BOIL 4820 02:50:32,889 --> 02:50:33,056 BOILERS. 4821 02:50:33,122 --> 02:50:35,558 THE GENERATION OF CHILL WATER 4822 02:50:35,625 --> 02:50:37,860 REQUIRES AN IMPROVEMENT TO OUR 4823 02:50:37,927 --> 02:50:40,430 ELECTRICAL GEAR THAT CAN 4824 02:50:40,496 --> 02:50:41,965 CONNECTS THESE AND THAT'S FUNDED 4825 02:50:42,031 --> 02:50:42,632 AND THAT'S UNDERWAY. 4826 02:50:42,699 --> 02:50:44,267 THE POINT IS, WE'RE DOING OUR 4827 02:50:44,334 --> 02:50:48,171 BEST TO PREPARE FOR EMERGENCY 4828 02:50:48,237 --> 02:50:50,373 SCENARIOS, WHETHER THEY'RE 4829 02:50:50,440 --> 02:50:53,209 MAN-MADE OR NATURAL EVENTS. 4830 02:50:53,276 --> 02:50:54,744 WE REALLY NEED TO BE PREPARED 4831 02:50:54,811 --> 02:50:58,247 FOR UNFORESEEN CIRCUMSTANCES. 4832 02:50:58,314 --> 02:50:59,849 SO I'VE GOT TWO QUICK SUMMARY 4833 02:50:59,916 --> 02:51:00,917 SLIDES. 4834 02:51:00,984 --> 02:51:03,186 BUILDING 10, E WING, IS REACHING 4835 02:51:03,252 --> 02:51:06,522 THE -- APPROACHING THE END ZONE, 4836 02:51:06,589 --> 02:51:07,924 SO IT WILL BE REALLY EXCITING 4837 02:51:07,991 --> 02:51:11,628 FOR DTM. 4838 02:51:11,694 --> 02:51:14,163 THE INTRAVENOUS ADMIXTURE UNIT 4839 02:51:14,230 --> 02:51:15,665 SUFFERED THIS SETBACK BUT ON A 4840 02:51:15,732 --> 02:51:17,300 POSITIVE NOTE, WE'VE PROCURED 4841 02:51:17,367 --> 02:51:20,536 NEW PASS-THROUGH UNITS. 4842 02:51:20,603 --> 02:51:21,671 WE'RE COMMITTED TO MAKING SURE 4843 02:51:21,738 --> 02:51:22,572 THESE ARE OF THE HIGHEST 4844 02:51:22,639 --> 02:51:23,606 QUALITY. 4845 02:51:23,673 --> 02:51:25,008 THERE ARE A NUMBER OF OTHER 4846 02:51:25,074 --> 02:51:26,009 PROJECTS THAT WILL IMPROVE THE 4847 02:51:26,075 --> 02:51:28,978 ENVIRONMENT OF CARE AND 4848 02:51:29,045 --> 02:51:30,146 BENEFITING PATIENTS AND THE 4849 02:51:30,213 --> 02:51:35,051 STAFF ALIKE, AND IMPROVING 4850 02:51:35,118 --> 02:51:35,551 EMERGENCY PREPAREDNESS. 4851 02:51:35,618 --> 02:51:38,021 THE SRLM PROJECT HAS MADE SOME 4852 02:51:38,087 --> 02:51:39,756 VERY STRONG PROGRESS SINCE YOUR 4853 02:51:39,822 --> 02:51:40,390 LAST VISIT. 4854 02:51:40,456 --> 02:51:41,357 I DIDN'T MENTION THIS IN THE 4855 02:51:41,424 --> 02:51:43,559 SLIDES BUT WE DID SUFFER A 4856 02:51:43,626 --> 02:51:45,194 SETBACK WITH RESPECT TO THE 4857 02:51:45,261 --> 02:51:47,563 EXCAVATION OPERATIONS. 4858 02:51:47,630 --> 02:51:51,534 WE ENCOUNTERED FILL, SOIL THAT 4859 02:51:51,601 --> 02:51:52,101 CONTAINED ASBESTOS. 4860 02:51:52,168 --> 02:51:54,904 IT APPEARS AS THOUGH YEARS AGO, 4861 02:51:54,971 --> 02:51:57,106 WHEN THEY BROUGHT IN FILL FROM 4862 02:51:57,173 --> 02:51:58,908 ANOTHER SITE TO CONSTRUCT THE 4863 02:51:58,975 --> 02:52:01,077 CRC, IT WAS CONTAMINATED WITH 4864 02:52:01,144 --> 02:52:01,844 ASBESTOS. 4865 02:52:01,911 --> 02:52:03,513 SO WE'RE ACCUSTOMED TO FINDING 4866 02:52:03,579 --> 02:52:05,381 ASBESTOS AS INSULATION ON PIPES 4867 02:52:05,448 --> 02:52:06,349 AND THINGS LIKE THAT, BUT THIS 4868 02:52:06,416 --> 02:52:09,619 WAS ACTUALLY IN THE SOIL. 4869 02:52:09,686 --> 02:52:11,254 SO WE HAD TO FIND A SOURCE TO 4870 02:52:11,320 --> 02:52:12,021 DISPOSE IT. 4871 02:52:12,088 --> 02:52:14,857 WE ALSO FOUND SOME FUEL 4872 02:52:14,924 --> 02:52:16,492 UNDERGROUND. 4873 02:52:16,559 --> 02:52:17,560 WE TOOK CARE OF ALL OF THOSE 4874 02:52:17,627 --> 02:52:18,127 REQUIREMENTS. 4875 02:52:18,194 --> 02:52:19,228 WE TOOK AIR QUALITY READINGS TO 4876 02:52:19,295 --> 02:52:20,396 MAKE SURE THAT DURING THE 4877 02:52:20,463 --> 02:52:21,931 ASBESTOS OPERATIONS, THAT WE 4878 02:52:21,998 --> 02:52:23,533 DIDN'T PUT ANYBODY IN HARM'S 4879 02:52:23,599 --> 02:52:24,233 WAY. 4880 02:52:24,300 --> 02:52:28,571 WE'VE DOCUMENTED ALL THAT. 4881 02:52:28,638 --> 02:52:30,273 ANOTHER THING THAT'S NOTE WORE 4882 02:52:30,339 --> 02:52:33,142 THREE ABOUT THE SRLM IS WE PUT 4883 02:52:33,209 --> 02:52:34,577 IN PLACE NOISE AND VIBRATION 4884 02:52:34,644 --> 02:52:35,745 PROTOCOLS SUCH THAT IF THE 4885 02:52:35,812 --> 02:52:36,746 DEPARTMENT OF PERIOPERATIVE 4886 02:52:36,813 --> 02:52:38,247 MEDICINE WAS CONDUCTING A 4887 02:52:38,314 --> 02:52:39,549 PROCEDURE AND NOISE OR 4888 02:52:39,615 --> 02:52:41,517 VIBRATIONS WERE IMPACTING THEM, 4889 02:52:41,584 --> 02:52:46,723 WE HAVE A HOTLINE, SPO SO TO S, 4890 02:52:46,789 --> 02:52:48,925 THAT ENABLES US TO DIRECT THE 4891 02:52:48,991 --> 02:52:50,026 CONTRACTOR TO CEASE OPERATIONS 4892 02:52:50,093 --> 02:52:50,326 IMMEDIATELY. 4893 02:52:50,393 --> 02:52:51,961 WE ACTUALLY HAD A CASE IN 4894 02:52:52,028 --> 02:52:52,829 JANUARY WHERE WE HAD TO EXERCISE 4895 02:52:52,895 --> 02:52:54,597 THAT AND IT WORKED SUCCESSFULLY, 4896 02:52:54,664 --> 02:52:57,967 SO WE'RE PLEASED TO REPORT THAT. 4897 02:52:58,034 --> 02:52:59,268 THE DESIGN REVIEW PROCESS, YOU 4898 02:52:59,335 --> 02:53:04,073 MAY RECALL THIS PROJECT INVOLVES 4899 02:53:04,140 --> 02:53:07,910 PARALLELLING CONSTRUCTION AND 4900 02:53:07,977 --> 02:53:10,646 DESIGN ACTIVITIES, SO WHILE THE 4901 02:53:10,713 --> 02:53:12,615 STRUCTURE IS DESIGNED, SOME OF 4902 02:53:12,682 --> 02:53:14,150 THE MECHANICAL ELECTRICAL 4903 02:53:14,217 --> 02:53:16,085 PLUMBING AND ARCHITECTURAL 4904 02:53:16,152 --> 02:53:18,321 DETAILS ARE STILL BEING K DESIGD 4905 02:53:18,387 --> 02:53:20,089 AND THE DESIGNER SUBMITTED SOME 4906 02:53:20,156 --> 02:53:22,625 DRAWINGS THAT HAD SOME ERRS AND 4907 02:53:22,692 --> 02:53:24,260 OMISSIONS AND WE REJECTED THE 4908 02:53:24,327 --> 02:53:25,027 SUBMISSIONS AND SENT THEM BACK 4909 02:53:25,094 --> 02:53:26,129 TO THE DRAWING BOARD. 4910 02:53:26,195 --> 02:53:28,431 IT'S REALLY CRITICAL THAT WE GET 4911 02:53:28,498 --> 02:53:31,601 THESE DETAILS RIGHT ON PAPER. 4912 02:53:31,667 --> 02:53:33,436 IN TERMS OF THE CAPITAL FUNDING 4913 02:53:33,503 --> 02:53:35,738 OUTLOOK, I MENTIONED THE 4914 02:53:35,805 --> 02:53:37,807 QUARTERLY MEETINGS ARE PROVING 4915 02:53:37,874 --> 02:53:38,141 BENEFICIAL. 4916 02:53:38,207 --> 02:53:40,309 WE ALSO HAVE -- WE HAVE HAD THE 4917 02:53:40,376 --> 02:53:41,077 OPPORTUNITY TO BRING THE STAFF 4918 02:53:41,144 --> 02:53:44,881 TO THE CAMPUS, AND WE'VE SHOWN 4919 02:53:44,947 --> 02:53:47,617 THEM A NUMBER OF PLACES WHERE 4920 02:53:47,683 --> 02:53:50,453 OUR FACILITIES' CONDITIONS ARE 4921 02:53:50,520 --> 02:53:52,889 ADVERSELY IMPACTING OUR ABILITY 4922 02:53:52,955 --> 02:53:57,160 TO CONDUCT STATE OF THE ART 4923 02:53:57,226 --> 02:53:57,894 SCIENCE. 4924 02:53:57,960 --> 02:54:01,564 I TALKED ABOUT THE INCREASES IN 4925 02:54:01,631 --> 02:54:05,101 THE PNF APPROPRIATION AND THE 4926 02:54:05,168 --> 02:54:09,539 FACT THAT WE ARE CURRENTLY IN A 4927 02:54:09,605 --> 02:54:09,705 CR. 4928 02:54:09,772 --> 02:54:12,508 THIS IS IMPORTANT TO US NOT 4929 02:54:12,575 --> 02:54:13,709 BECAUSE -- THE AMOUNT OF THIS 4930 02:54:13,776 --> 02:54:15,244 YEAR'S APPROPRIATION, WELL, NOT 4931 02:54:15,311 --> 02:54:16,879 ONLY, IN FACT THIS YEAR BUT 4932 02:54:16,946 --> 02:54:18,347 OFTEN SERVES AS A BENCHMARK FOR 4933 02:54:18,414 --> 02:54:19,415 FUTURE YEARS, SO WE'RE WORKING 4934 02:54:19,482 --> 02:54:20,950 HARD TO PROTECT THAT INCREASE 4935 02:54:21,017 --> 02:54:21,784 THAT WE'VE WORKED SO HARD TO 4936 02:54:21,851 --> 02:54:22,418 ACHIEVE. 4937 02:54:22,485 --> 02:54:26,455 OTHER POSITIVE SIGNS INCLUDE THE 4938 02:54:26,522 --> 02:54:30,493 FACT THAT DURING THE NIH 4939 02:54:30,560 --> 02:54:31,294 LEADERSHIP FORUM IN NOVEMBER, 4940 02:54:31,360 --> 02:54:34,397 THERE WAS A ROBUST DISCUSSION, 4941 02:54:34,463 --> 02:54:37,266 TWO PANEL DISCUSSIONS ABOUT THE 4942 02:54:37,333 --> 02:54:38,234 CRITICALITY ABOUT ADDRESSING OUR 4943 02:54:38,301 --> 02:54:38,968 FACILITIES AND INFRASTRUCTURE 4944 02:54:39,035 --> 02:54:42,371 NEEDS AND ON DECEMBER 20TH, DRS. 4945 02:54:42,438 --> 02:54:46,776 BERTAGNOLLI AND RATHMELL 4946 02:54:46,843 --> 02:54:49,078 PARTICIPATED IN A CAMPUS TOUR I 4947 02:54:49,145 --> 02:54:51,547 WAS HONORED TO LEAD AND THEY 4948 02:54:51,614 --> 02:54:52,215 DEMONSTRATED A LOT OF INTEREST 4949 02:54:52,281 --> 02:54:53,082 IN OUR FACILITIES. 4950 02:54:53,149 --> 02:54:56,018 SO THANKS FOR YOUR CONTINUED 4951 02:54:56,085 --> 02:54:57,753 SUPPORT, AND NOW I STAND BY FOR 4952 02:54:57,820 --> 02:55:01,924 ANY QUESTIONS. 4953 02:55:01,991 --> 02:55:02,892 >> THANKS, DAN. 4954 02:55:02,959 --> 02:55:03,759 ANY QUESTIONS? 4955 02:55:03,826 --> 02:55:04,026 STEPHANIE? 4956 02:55:04,093 --> 02:55:05,094 >> NOT A QUESTION, JUST A 4957 02:55:05,161 --> 02:55:05,628 COMMENT. 4958 02:55:05,695 --> 02:55:06,495 YOU'RE SO MODEST. 4959 02:55:06,562 --> 02:55:07,930 I MEAN, LOOK AT ALL THIS WORK, 4960 02:55:07,997 --> 02:55:08,798 IT'S INCREDIBLE. 4961 02:55:08,865 --> 02:55:15,037 SO CONGRATULATIONS. 4962 02:55:15,104 --> 02:55:18,975 >> I COULD ADD THAT WHEN I 4963 02:55:19,041 --> 02:55:22,011 SUMMED UP THE ACTIVE PROJECTS 4964 02:55:22,078 --> 02:55:23,512 THAT ARE TAKING PLACE, SOME OF 4965 02:55:23,579 --> 02:55:24,313 WHICH WERE MENTIONED TODAY BUT 4966 02:55:24,380 --> 02:55:27,049 THERE ARE OTHERS THAT ARE IN 4967 02:55:27,116 --> 02:55:30,419 VARIOUS PHASES OF DESIGN AND 4968 02:55:30,486 --> 02:55:33,689 CONSTRUCTION, IT'S APPROXIMATELY 4969 02:55:33,756 --> 02:55:34,891 $900 MILLION WORTH OF ACTIVE 4970 02:55:34,957 --> 02:55:36,425 PROJECTS THAT ARE IN VARIOUS 4971 02:55:36,492 --> 02:55:36,893 PHASES. 4972 02:55:36,959 --> 02:55:38,394 SO NONE OF THIS WOULD HAVE ABOUT 4973 02:55:38,461 --> 02:55:42,198 POSSIBLE WITHOUT STRONG SUPPORT 4974 02:55:42,265 --> 02:55:45,368 FROM NIH, THE HHS, OMB AND 4975 02:55:45,434 --> 02:55:48,638 CONGRESS LEVEL OF SUPPORT. 4976 02:55:48,704 --> 02:55:52,375 AND YOUR COMMITTEE HAS BOLSTERED 4977 02:55:52,441 --> 02:55:54,343 OUR CREDIBILITY IN OR TICK 4978 02:55:54,410 --> 02:55:58,915 LATING OUR NEEDS AN -- INARTICUD 4979 02:55:58,981 --> 02:55:59,982 MAKING SURE THAT THE RESEARCH 4980 02:56:00,049 --> 02:56:02,618 HOSPITAL REQUIREMENTS ARE MET. 4981 02:56:02,685 --> 02:56:05,021 SO IT'S REALLY -- IT TAKES A 4982 02:56:05,087 --> 02:56:09,292 VILLAGE TO RAISE A KID FOR SURE. 4983 02:56:09,358 --> 02:56:11,427 >> IT IS ALSO VERY TRUE THAT 4984 02:56:11,494 --> 02:56:15,932 TRYING TO KEEP OUR 4985 02:56:15,998 --> 02:56:18,434 INFRASTRUCTURE ACROSS CAMPUS 4986 02:56:18,501 --> 02:56:21,070 ACTIVE IS QUITE A HUMBLING 4987 02:56:21,137 --> 02:56:28,077 EXPERIENCE, STEPHANIE. 4988 02:56:28,144 --> 02:56:28,611 >> TONI. 4989 02:56:28,678 --> 02:56:29,712 >> JUST A QUICK QUESTION. 4990 02:56:29,779 --> 02:56:32,114 WHAT MADE YOU ALL TEST THE SOIL 4991 02:56:32,181 --> 02:56:34,817 AND FOUND THAT IT WAS ASBESTOS, 4992 02:56:34,884 --> 02:56:36,786 WHAT MADE YOU ALL DECIDE THAT 4993 02:56:36,852 --> 02:56:40,323 YOU SHOULD TEST THAT SOIL? 4994 02:56:40,389 --> 02:56:41,924 >> GREAT QUESTION. 4995 02:56:41,991 --> 02:56:43,559 SO FOR THE FOLKS JOINING 4996 02:56:43,626 --> 02:56:45,227 VIRTUALLY, THE QUESTION WAS, HOW 4997 02:56:45,294 --> 02:56:47,096 DID WE GO ABOUT EVEN THINKING 4998 02:56:47,163 --> 02:56:49,165 THAT THERE MIGHT BE ASBESTOS IN 4999 02:56:49,231 --> 02:56:49,732 THE SOIL? 5000 02:56:49,799 --> 02:56:52,635 AND THE ANSWER IS THAT IT WAS 5001 02:56:52,702 --> 02:56:53,636 ACTUALLY VISUAL. 5002 02:56:53,703 --> 02:56:56,105 YOU COULD SEE A LAYER OF BROWN 5003 02:56:56,172 --> 02:56:58,441 SOIL, AND THEN YOU SAW THIS 5004 02:56:58,507 --> 02:57:02,345 LAYER OF WHITE MATERIAL. 5005 02:57:02,411 --> 02:57:04,213 AND THE PEOPLE WHO SPECIALIZE IN 5006 02:57:04,280 --> 02:57:05,748 THIS SAID, WE SHOULD TEST THIS, 5007 02:57:05,815 --> 02:57:08,150 AND INDEED, THEY TESTED IT AND 5008 02:57:08,217 --> 02:57:11,520 FOUND TO BE ASBESTOS. 5009 02:57:11,587 --> 02:57:13,189 SO IT WAS VISUALLY EVIDENT AS WE 5010 02:57:13,255 --> 02:57:15,224 WERE CONDUCTING THE EXCAVATION 5011 02:57:15,291 --> 02:57:17,526 OPERATIONS. 5012 02:57:17,593 --> 02:57:20,730 >> AND THAT LED TO THE DISCOVERY 5013 02:57:20,796 --> 02:57:22,098 OF THE LEAK AS WELL? 5014 02:57:22,164 --> 02:57:22,832 >> YES, YES. 5015 02:57:22,898 --> 02:57:29,238 >> WELL, THANK GOD FOR ASBESTOS. 5016 02:57:29,305 --> 02:57:30,973 >> DAVID. 5017 02:57:31,040 --> 02:57:35,011 >> THE CENTERS THAT THE USGS 5018 02:57:35,077 --> 02:57:37,947 INSTALLED BY THE CRC, ARE THESE 5019 02:57:38,014 --> 02:57:39,382 SENSORS STILL IN PLACE AND ARE 5020 02:57:39,448 --> 02:57:41,050 THEY GOING TO BE PROVIDING 5021 02:57:41,117 --> 02:57:42,752 ONGOING REALTIME DATA? 5022 02:57:42,818 --> 02:57:45,054 >> YES. 5023 02:57:45,121 --> 02:57:47,189 THE SENSORS -- INTERESTINGLY 5024 02:57:47,256 --> 02:57:48,524 ENOUGH, WHEN I STARTED ASKING, 5025 02:57:48,591 --> 02:57:52,028 WHERE ARE THE NEAREST SENSORS, 5026 02:57:52,094 --> 02:57:53,529 YOU WOULD THINK WASHINGTON, D.C. 5027 02:57:53,596 --> 02:57:54,764 WOULD HAVE SENSORS. 5028 02:57:54,830 --> 02:57:57,566 THEY DON'T. 5029 02:57:57,633 --> 02:57:59,869 THERE HAS BEEN THIS BIAS THAT 5030 02:57:59,935 --> 02:58:01,203 EARTHQUAKES OCCUR ON THE WEST 5031 02:58:01,270 --> 02:58:04,006 COAST, SO THE EAST COAST IS 5032 02:58:04,073 --> 02:58:04,440 POORLY REPRESENTED. 5033 02:58:04,507 --> 02:58:06,509 SO WHEN WE OFFERED TO DEVOTE, IF 5034 02:58:06,575 --> 02:58:09,478 YOU WILL, LAND TO THE USGS TO 5035 02:58:09,545 --> 02:58:11,013 HOST THESE, THEY SAID, WOW, 5036 02:58:11,080 --> 02:58:13,749 THAT'S A WIN-WIN. 5037 02:58:13,816 --> 02:58:15,151 AND SO THEY WERE INSTALLED IN 5038 02:58:15,217 --> 02:58:17,019 2015, AND THEY'RE STILL ACTIVE, 5039 02:58:17,086 --> 02:58:20,423 AND THEY PROVIDE THE MAINTENANCE 5040 02:58:20,489 --> 02:58:21,257 FOR THEM. 5041 02:58:21,323 --> 02:58:22,925 THEY COME OUT EVERY ONCE IN A 5042 02:58:22,992 --> 02:58:24,460 WHILE. 5043 02:58:24,527 --> 02:58:26,095 THEY HAVE WIRELESS COMMUNICATION 5044 02:58:26,162 --> 02:58:30,332 SO THEY TALK TO THEIR SHAKE MAP, 5045 02:58:30,399 --> 02:58:34,070 AND SO -- AND THEY AUTOMATICALLY 5046 02:58:34,136 --> 02:58:35,905 NOTIFY NIH STAFF WHEN CERTAIN 5047 02:58:35,971 --> 02:58:37,973 VALUES ARE EXCEEDED. 5048 02:58:38,040 --> 02:58:42,044 AND SO IF THERE'S A DRUG GOING G 5049 02:58:42,111 --> 02:58:43,579 BY THAT HAS A REALLY MODEST 5050 02:58:43,646 --> 02:58:45,714 IMPACT ON THEM, BUT LEGIBLE, IF 5051 02:58:45,781 --> 02:58:49,018 YOU WILL, DETECTABLE, IT DOESN'T 5052 02:58:49,085 --> 02:58:50,152 SEND OFF -- YOU KNOW, WE DON'T 5053 02:58:50,219 --> 02:58:53,189 WANT TO HAVE THE -- WHAT'S THE 5054 02:58:53,255 --> 02:58:55,257 EXPRESSION, CRY WOLF. 5055 02:58:55,324 --> 02:58:57,893 IT ONLY SENDS US AN AUTOMATED 5056 02:58:57,960 --> 02:58:58,394 MESSAGE. 5057 02:58:58,461 --> 02:59:00,262 NOW WE CAN -- AND I ASKED MY 5058 02:59:00,329 --> 02:59:02,231 STAFF TO DO THIS, WE CAN 5059 02:59:02,298 --> 02:59:03,866 PROACTIVELY GO TO THE MONITORS 5060 02:59:03,933 --> 02:59:06,368 THROUGH THE WEB AND VERIFY THAT 5061 02:59:06,435 --> 02:59:07,670 THEY'RE FUNCTIONING. 5062 02:59:07,736 --> 02:59:10,072 AND WHEN THE EARTHQUAKE OCCURRED 5063 02:59:10,139 --> 02:59:15,211 IN ROCKVILLE, I SAID, HEY, 5064 02:59:15,277 --> 02:59:17,947 PLEASE LOOK AT THE DATA AND SEE 5065 02:59:18,013 --> 02:59:19,248 IF INDEED THEY REGISTERED 5066 02:59:19,315 --> 02:59:20,916 SOMETHING, AND THEY DID. 5067 02:59:20,983 --> 02:59:22,551 ALTHOUGH WELL SHORT OF THE 5068 02:59:22,618 --> 02:59:24,386 ACTIONABLE LEVEL. 5069 02:59:24,453 --> 02:59:26,021 SO THEY'RE FUNCTIONING, AND WE 5070 02:59:26,088 --> 02:59:27,123 INTEND ON SUSTAINING THEM 5071 02:59:27,189 --> 02:59:30,126 FOREVER. 5072 02:59:30,192 --> 02:59:31,660 DOES THAT HELP, SIR? 5073 02:59:31,727 --> 02:59:33,462 >> NO, IT DOES BECAUSE I WONDER 5074 02:59:33,529 --> 02:59:35,431 HOW THEY TIED IN TO THE 5075 02:59:35,498 --> 02:59:36,699 EMERGENCY MANAGEMENT PLAN FOR 5076 02:59:36,765 --> 02:59:38,167 THE CLINICAL CENTER AND 5077 02:59:38,234 --> 02:59:40,870 POTENTIALLY ELSEWHERE ON NIH. 5078 02:59:40,936 --> 02:59:44,140 >> SO WE HAD A CHANCE A FEW 5079 02:59:44,206 --> 02:59:47,510 WEEKS AGO TO BRIEF PIUS AND TO 5080 02:59:47,576 --> 02:59:50,012 BRIEF ROXANNE BENDETTI, WHO'S 5081 02:59:50,079 --> 02:59:51,814 THE NEW EMERGENCY MANAGER, 5082 02:59:51,881 --> 02:59:52,882 BECAUSE WE WANT TO MAKE SURE 5083 02:59:52,948 --> 02:59:56,485 THAT WE ALL UNDERSTAND THIS 5084 02:59:56,552 --> 03:00:00,623 CAPABILITY, AND SO I BELIEVE NOW 5085 03:00:00,689 --> 03:00:02,892 WE'VE GOT ALL THE STAKEHOLDERS 5086 03:00:02,958 --> 03:00:03,659 KNOWLEDGEABLE ABOUT THIS 5087 03:00:03,726 --> 03:00:04,660 IMPORTANT CAPABILITY SO THAT IF 5088 03:00:04,727 --> 03:00:08,164 IT HAPPEN, WE'RE NOT -- 5089 03:00:08,230 --> 03:00:09,398 CERTAINLY NOT STANDING ON THE 5090 03:00:09,465 --> 03:00:11,834 STEPS OF BUILDING 1 WITH 5091 03:00:11,901 --> 03:00:15,671 BLACKBERRIES LIKE I WAS IN 2011. 5092 03:00:15,738 --> 03:00:18,073 >> DR. DEVASKAR. 5093 03:00:18,140 --> 03:00:18,407 >> THANK YOU. 5094 03:00:18,474 --> 03:00:23,879 THANK YOU SO MUCH FOR THAT. 5095 03:00:23,946 --> 03:00:25,848 IT'S JUST A LOT OF WORK AND I'M 5096 03:00:25,915 --> 03:00:26,282 APPRECIATIVE. 5097 03:00:26,348 --> 03:00:27,049 COMING FROM THE WEST COAST, WE 5098 03:00:27,116 --> 03:00:28,684 HAVE TO HAVE EVERY BUILDING, 5099 03:00:28,751 --> 03:00:31,620 EVERY GENERATOR MEET EARTHQUAKE 5100 03:00:31,687 --> 03:00:34,590 CODES OVER HERE, SO THE COST OF 5101 03:00:34,657 --> 03:00:36,325 CONSTRUCTION OR EVEN HAVING AN 5102 03:00:36,392 --> 03:00:37,593 INDEPENDENT GENERATOR FOR 5103 03:00:37,660 --> 03:00:41,830 EMERGENCY PURPOSES FOR THE 5104 03:00:41,897 --> 03:00:43,432 HEALTH SYSTEM OR HOSPITALS ARE 5105 03:00:43,499 --> 03:00:44,466 EXORBITANT, AND I JUST WONDERED 5106 03:00:44,533 --> 03:00:46,835 IF THAT IS AFFECTING THE COST OF 5107 03:00:46,902 --> 03:00:55,177 CONSTRUCTION IN WASHINGTON, D.C. 5108 03:00:55,244 --> 03:00:56,478 >> SO THAT'S A QUESTION THAT I 5109 03:00:56,545 --> 03:00:57,780 THINK I'LL HAVE TO GET BACK TO 5110 03:00:57,846 --> 03:00:58,581 YOU ON. 5111 03:00:58,647 --> 03:01:00,616 I CAN SAY, HAVING CONFIRMED 5112 03:01:00,683 --> 03:01:04,019 EARLIER TODAY THAT THE SRLM 5113 03:01:04,086 --> 03:01:07,856 ADDITION HAS BEEN DESIGNED FOR A 5114 03:01:07,923 --> 03:01:09,391 HIGHER LEVEL OF SEISMIC 5115 03:01:09,458 --> 03:01:10,793 PREPAREDNESS THAN THE CRC, 5116 03:01:10,859 --> 03:01:13,429 BECAUSE OF THE EVOLUTION OF THE 5117 03:01:13,495 --> 03:01:16,332 STANDARDS. 5118 03:01:16,398 --> 03:01:17,333 THE EMERGENCY GENERATORS THAT 5119 03:01:17,399 --> 03:01:18,567 ARE GOING TO BE PROVIDED, I 5120 03:01:18,634 --> 03:01:19,969 THINK ARE SUBJECT TO THE SAME 5121 03:01:20,035 --> 03:01:21,503 CRITERIA, BUT I'D LIKE TO GET 5122 03:01:21,570 --> 03:01:25,874 BACK TO CONFIRM THAT. 5123 03:01:25,941 --> 03:01:28,410 I ALSO KNOW THAT IN THE SRLM, 5124 03:01:28,477 --> 03:01:30,579 THERE IS A SIGNIFICANT 5125 03:01:30,646 --> 03:01:32,448 INVESTMENT IN PROPERLY 5126 03:01:32,514 --> 03:01:37,253 SUPPORTING UTILITIES SO THAT IF 5127 03:01:37,319 --> 03:01:42,291 THEY EXPERIENCE THAT SAME TYPE 5128 03:01:42,358 --> 03:01:43,592 OF ACCELERATION THAT THEY'RE 5129 03:01:43,659 --> 03:01:44,260 PROPERLY SUPPORTED AND YOU DON'T 5130 03:01:44,326 --> 03:01:46,128 HAVE PIPES OPENING UP AND 5131 03:01:46,195 --> 03:01:46,428 RUPTURING. 5132 03:01:46,495 --> 03:01:49,164 SO A SUBSTANTIAL INCREASE IN 5133 03:01:49,231 --> 03:01:51,333 COST WAS INCURRED. 5134 03:01:51,400 --> 03:01:53,869 BUT I SHOULD ALSO ADD THAT I AM 5135 03:01:53,936 --> 03:01:55,938 CONFIDENT THAT WHILE WE'VE 5136 03:01:56,005 --> 03:01:58,240 INVESTED FOR SEISMIC 5137 03:01:58,307 --> 03:02:00,743 PREPAREDNESS IN BETHESDA, THE 5138 03:02:00,809 --> 03:02:02,511 STANDARDS OR THE REQUIREMENTS 5139 03:02:02,578 --> 03:02:04,313 AROUND AS HIGH AS THOSE ON THE 5140 03:02:04,380 --> 03:02:08,183 WEST COAST. 5141 03:02:08,250 --> 03:02:12,688 SO I BELIEVE WHAT I'M GOING TO 5142 03:02:12,755 --> 03:02:13,956 BE BRINGING BACK TO YOU IS THE 5143 03:02:14,023 --> 03:02:16,158 COSTS WERE SUBSTANTIAL BUT NOT 5144 03:02:16,225 --> 03:02:17,793 EX-HOR BANT TO MAKE SURE THAT 5145 03:02:17,860 --> 03:02:19,862 EARTHQUAKE PREPAREDNESS WAS 5146 03:02:19,928 --> 03:02:20,963 FACTORED IN. 5147 03:02:21,030 --> 03:02:22,498 I'LL GET BACK TO YOU AS SOON AS 5148 03:02:22,564 --> 03:02:22,698 I CAN. 5149 03:02:22,765 --> 03:02:23,032 >> THANK YOU. 5150 03:02:23,098 --> 03:02:24,767 >> THANKS, DAN. 5151 03:02:24,833 --> 03:02:25,334 REALLY APPRECIATE IT. 5152 03:02:25,401 --> 03:02:27,202 THANK YOU, WELL DONE, AND THANKS 5153 03:02:27,269 --> 03:02:28,404 TO YOUR TEAM AS WELL. 5154 03:02:28,470 --> 03:02:32,141 SO WE ARE NOW AT THE OPEN 5155 03:02:32,207 --> 03:02:33,842 DISCUSSION, IF THERE'S ANYTHING 5156 03:02:33,909 --> 03:02:35,844 THAT THE BOARD WOULD LIKE TO 5157 03:02:35,911 --> 03:02:39,448 DISCUSS, THE FLOOR IS OPEN. 5158 03:02:39,515 --> 03:02:41,183 HERE AT NIH, WE TRAIN TO 5159 03:02:41,250 --> 03:02:41,984 STANDARD AND NOT TO TIME SO 5160 03:02:42,051 --> 03:02:43,419 WE'RE A LITTLE BIT AHEAD OF TIME 5161 03:02:43,485 --> 03:02:45,454 AND THAT'S AN OKAY THING. 5162 03:02:45,521 --> 03:02:47,089 IF NOT, OKAY. 5163 03:02:47,156 --> 03:02:48,757 WELL, THANK YOU ALL. 5164 03:02:48,824 --> 03:02:51,360 YES, TONI, GO AHEAD. 5165 03:02:51,427 --> 03:02:56,799 >> DR. GILMAN, YOU MENTIONED 5166 03:02:56,865 --> 03:02:57,666 THAT THE PRESIDENT HAD SIGNED 5167 03:02:57,733 --> 03:02:59,301 SOMETHING REGARDING THE WOMAN'S 5168 03:02:59,368 --> 03:03:01,637 HEALTH RESEARCH. 5169 03:03:01,704 --> 03:03:02,171 OR WAS THAT -- 5170 03:03:02,237 --> 03:03:04,173 >> DR. TABAK DID. 5171 03:03:04,239 --> 03:03:08,210 >> CAN YOU FILL ME IN ON IT? 5172 03:03:08,277 --> 03:03:13,916 >> IT IS -- SO I WOULD SAY WHEN 5173 03:03:13,982 --> 03:03:14,983 THE PRESIDENT SIGNED SOMETHING, 5174 03:03:15,050 --> 03:03:16,185 IT'S AT A VERY HIGH LEVEL AND 5175 03:03:16,251 --> 03:03:18,587 THERE AREN'T A LOT OF DETAILS, 5176 03:03:18,654 --> 03:03:21,090 AND IT WAS REALLY -- RIGHT NOW 5177 03:03:21,156 --> 03:03:24,493 WHAT HAS GONE ON IS SORT OF A 5178 03:03:24,560 --> 03:03:28,764 ROUNDUP OF WHAT'S ALREADY GOING 5179 03:03:28,831 --> 03:03:30,065 ON, AND TRYING TO DETERMINE THE 5180 03:03:30,132 --> 03:03:33,135 GAPS BETWEEN WHAT WE NEED AND 5181 03:03:33,202 --> 03:03:35,804 WHAT WE'RE WORKING ON ALREADY TO 5182 03:03:35,871 --> 03:03:36,638 SEE WHAT ADDITIONAL INITIATIVES 5183 03:03:36,705 --> 03:03:41,877 WOULD BE FUNDED. 5184 03:03:41,944 --> 03:03:44,513 BUT IT'S NOT NIH-SPECIFIC, IT'S 5185 03:03:44,580 --> 03:03:46,382 NOT CLINICAL CENTER-SPECIFIC BY 5186 03:03:46,448 --> 03:03:47,916 ANY STRETCH. 5187 03:03:47,983 --> 03:03:50,986 IT IS REALLY AT A VERY HIGH 5188 03:03:51,053 --> 03:03:55,357 NATIONAL LEVEL. 5189 03:03:55,424 --> 03:03:56,658 >> ANY OTHER QUESTIONS OR 5190 03:03:56,725 --> 03:03:58,627 DISCUSSION? 5191 03:03:58,694 --> 03:04:00,062 IF NOT, THANK YOU ALL VERY MUCH 5192 03:04:00,129 --> 03:04:01,697 FOR A GREAT MEETING, AND I JUST 5193 03:04:01,764 --> 03:04:04,433 WANT TO SAY PERSONALLY, YOU 5194 03:04:04,500 --> 03:04:05,567 ANNOUNCED MY RETIREMENT, SO 5195 03:04:05,634 --> 03:04:08,036 REALLY THANKS TO NIH. 5196 03:04:08,103 --> 03:04:13,909 BY VUR TEBY VIRTUE OF BEING ON D 5197 03:04:13,976 --> 03:04:16,011 I'M ABLE TO MAINTAIN MY SEAT ON 5198 03:04:16,078 --> 03:04:16,478 THE AMERICAN HOSPITAL 5199 03:04:16,545 --> 03:04:17,246 ASSOCIATION SO THANK YOU VERY 5200 03:04:17,312 --> 03:04:17,980 MUCH FOR THAT, IT'S VERY GOOD TO 5201 03:04:18,046 --> 03:04:19,081 BE PART OF THE NIH. 5202 03:04:19,148 --> 03:04:20,382 OUR NEXT MEETING WILL BE ON 5203 03:04:20,449 --> 03:04:23,452 FRIDAY, THE 21ST OF JUNE AT 9:0, 5204 03:04:23,519 --> 03:04:25,254 SO THIS IS PRESIDENT'S DAY 5205 03:04:25,320 --> 03:04:25,788 WEEKEND. 5206 03:04:25,854 --> 03:04:27,189 FOR SOME IT'S A LONG FOUR-DAY 5207 03:04:27,256 --> 03:04:27,456 WEEK END. 5208 03:04:27,523 --> 03:04:29,491 SO WISHING EVERYONE A SAFE 5209 03:04:29,558 --> 03:04:30,893 HOLIDAY WEEK AHEAD AND IF YOU'RE 5210 03:04:30,959 --> 03:04:32,795 STAYING AROUND THE AREA, BEWARE, 5211 03:04:32,861 --> 03:04:34,430 WE'RE ON SNOW ALERT FOR 5212 03:04:34,496 --> 03:04:35,431 TOMORROW. 5213 03:04:35,497 --> 03:04:37,466 THAT MAY PARALYZE D.C. SO WHO 5214 03:04:37,533 --> 03:04:38,333 KNOWS. 5215 03:04:38,400 --> 03:04:40,636 SO ANYWAY, I'D LIKE TO GO AHEAD 5216 03:04:40,702 --> 03:04:42,504 AND FORMALLY ADJOURN THE 5217 03:04:42,571 --> 03:04:42,871 MEETING. 5218 03:04:42,938 --> 03:04:44,373 THANK YOU VERY MUCH, GOD BLESS 5219 03:04:44,440 --> 03:04:44,606 YOU ALL. 5220 03:04:44,673 THANK YOU.