HELLO, EVERYONE. WELCOME TO
THE TECHNICAL ASSISTANCE
WEBINAR. FOR HFAHD2407. A FEW
HOUSEKEEPING ITEMS. PLEASE KNOW
THIS MEETING IS BEING RECORDED.
IF YOU EXPERIENCE ANY TECHNICAL
ISSUES YOU CAN CHAT TO THE HOST
BY PUTTING A MESSAGE IN THE CHAT
OR E-MAIL AND JUST PLEASE PUT
TECH SUPPORT IN THE E-MAIL
SUBJECT LINE. AND TO POSE
QUESTIONS DURING THE Q&A YOU CAN
SELECT THE Q&A BUTTON IN THE
TASK BAR OF YOUR SCREEN AND YOU
SIMPLY ENTER YOUR QUESTION INTO
THE Q&A PANEL AND THEN SELECT
SEND. THE SELECT SEND BUTTON.
ALL QUESTIONS CAN BE VIEWED BY
THE PANELISTS. YOU CLICK THE
CAPTION ON YOUR TASK BAR. CLICK
CAPTION BUTTON. PULL THE DOT ON
THE SLIDER TO ADJUST THE SIZE OF
CAPTIONING. ADDITIONAL
REMINDERS, PARTICIPATION IS
OPTIONAL AND IS NOT REQUIRED TO
APPLY TO THE RFA. THE WEBINAR
IS BEING RECORDED AND WE WILL
SHARE THE RECORDING WITH
REGISTRANTS BY E-MAIL.
PANELISTS, PRESENTERS WILL
ANSWER QUESTIONS AS TIME
PERMITS. MY NAME IS TOYIN
AJISAFE, I'M A PROGRAM OFFICER.
FOR VISUAL DESCRIPTION I'M
MIDDLE AGED MALE WITH DARK BROWN
SKIN AND BRACHYHAIR. AND GRAY
GOATEE. TODAY I'M WEARING A
WHITE LONG SLEEVE SHIRT. I DO
NOT HAVE ANY DISCLOSURES. TODAY
I'M EXCITED TO BE JOINED BY THE
DIRECTOR OF THE NATIONAL CENTER
FOR MEDICAL REHABILITATION
RESEARCH DR. TERESA CRUS AND I
WANT TO KNOW THAT THIS IS
ACTUALLY HER BRAIN CHILD AND I'M
THRILLED THAT SHE'S ON HAND TO
HELP ANSWER QUESTIONS TODAY.
I'M ALSO JOINED BY CHRISTIAN
ROBINS WHO'S FROM THE NATIONAL
INSTITUTE OF CHILD HEALTH AND
SHE WILL ADDRESS THE REVIEW
SECTION OF THIS PRESENTATION.
FINAL I'M JOINED BY DR. MORIA
BIT TMANN. THE AGENERAL DA, SO
WE'LL BRIEFLY GO OVER THE RFA
BACKGROUND, GO OVER SOME KEY
DEFINITIONS, WE'LL TOUCH ON THE
OBJECTIVES AND EXPECTATIONS. AS
I MENTIONED DR. ROBINS WILL
ADDRESS THE PEER REVIEW. WE'LL
TOUCH ON TIMELINE FOR
SUBMISSION, REVIEW AND SELECTION
OF APPLICATIONS AND THEN FINALLY
WE'LL OPEN UP THE FLOOR FOR
QUESTIONS AND THE PANEL WILL
RESPOND TO THOSE QUESTIONS. RFA
BACKGROUND. SO SOME KEY
DEFINITIONS. ABLEISM IS DEFINED
AS DISCRIMINATION AND SOCIAL
PREJUDICE AGAINST PEOPLE WITH
DISABILITIES. CHARACTERIZES
PEOPLE AND DEFINES PEOPLE BY
THEIR DISABILITIES. CLASSIFIES
DISABLED PEOPLE AS INFERIOR TO
NONDISABLED PEOPLE. ABLEISM MAY
MANIFEST IN THE PHYSICAL
ENVIRONMENT. JUST IN BEHAVIORS.
EXAMPLES ARE INACCESSIBLE
MEDICAL FACILITIES AND
EQUIPMENT. FAILING TO DISCLOSE
REPRODUCTIVE HEALTH BASED ON
ASSUMPTIONS. AND FAIL TO
REPRESENT OR MEANINGFULLY
INCUDOTHE VOICES OF DISABLED
PEOPLE. THESE ARE OFTEN
GROUNDED IN ABLEST BELIEFS AND
PERPETRATE ON DISABLED PEOPLE
AND BENEFIT ABLE-BODIED PEOPLE.
NEXT SLIDE, PLEASE. BOTH
ABLEISM AND STRUCTURAL ABLEISM
ARE INCLUDED IN THIS NOTICE OF
FUNDING OPPORTUNITY. AND FROM
HERE ON OUT I WILL REFER TO THE
NOTICE OF FUNDING OPPORTUNITY AS
A NOFO. FOR THE PURPOSE OF THIS
NOFO DISABILITY IS A DEMOGRAPHIC
CHARACTERISTICS NOT ON OUTCOME
MEASURE. TO TERM PEOPLE WITH
DISABILITIES IS USED THROUGHOUT
THIS NOFO FOR CONSISTENCY,
HOWEVER, WE FULLY ACKNOWLEDGE
THAT THERE ARE PREFERENCES,
DIFFERENCES IN PREFERENCES IN
THE DISABILITIES COMMUNITY.
THIS IS SOME DISABLED PERSON AND
OTHERS PREFER PEOPLE WITH
DISABILITY AND SO BOTH FULL LU
INCLUDED IN THIS NOFO. PEOPLE
WITH LIVED EXPERIENCE ARE THOSE
THAT DIRECTLY AFFECTED BY SOCIAL
HEALTH, PUBLIC HEALTH, OR OTHER
ISSUES AND THE STRATEGIES THAT
AIM TO ADDRESS THOSE ISSUES.
SUCH THAT PEOPLE WITH LIVED
EXPERIENCE HAVE INSIGHTS THAT
CAN REFORM AND IMPROVE SYSTEMS,
RESEARCH, POLICIES, PRACTICES
AND PROGRAMS. PEOPLE WITH
DISABILITIES OFTEN FACE BARRIERS
TO ACCESSING HEALTH CARE.
EXAMPLE IS PHYSICAL BARRIERS,
INACCESSIBLE FACILITIES AND
MEDICAL EQUIPMENT, LACK OF
TRANSPORTATION TO APPOINTMENTS.
PEOPLE WITH DISABILITIES ARE
MORE LIKELY TO EXPERIENCE
CHRONIC HEALTH CONDITIONS.
THEY'RE ALSO LESS LIKELY TO BE
UP TO DATE ON PREVENTIVE CARE
SUCH AS CANCER SCREENING. IN
FACT, CONSEQUENCE OF ILL
IMPROVED TRIAGED PRACTICES
DURING THE COVID-19 PANDEMIC,
THE DEPARTMENT OF HEALTH AND
HUMAN SERVICES HAD TO ISSUE A
BULLETIN AND I READ, REAFFIRMING
THAT PERSONS WITH DISABILITIES
SHOULD NOT BE DENIED MEDICAL
CARE ON THE BASES OF STEREO
TYPES, ASSESSMENTS OF QUALITY OF
LIFE OR JUDGMENTS ABOUT A
PERSON'S RELATIVE WORTH BASED ON
THE PRESENCE OR ABSENCE OF
DISABILITIES. BESIDES THE
OBJECTIVES AND EXPECTATIONS OF
THIS NOFO IS TO INVITE
APPLICATIONS THAT CENTER THE
SOCIAL MODEL OF DISABILITY, TO
BETTER UNDERSTAND MECHANISMS BY
WHICH ABLEISM INFLUENCES THE
HEALTH OF PEOPLE WITH
DISABILITIES. WE INVITE
APPLICATION TO INTERVENE AT A
COMMUNITY OR HEALTH SYSTEMS
LEVEL TO MITIGATE ADVERSE HEALTH
EFFECTS OF ABLEISM. STUDIES CAN
BE OBSERVATIONAL SUCH THAT
THEY'RE LOOKING AT IMPACTSES OF
ABLEISM, IMPACT OF EXTANT OR
EXISTING FACTORS, LOOKING AT
POLICIES, AND IMPACT OF THOSE
POLICIES AND LAWS AND THE HELD
OF INDIVIDUALS, FAMILIES AND
COMMUNITIES. STUDIES MAY
INVOLVE DATA COLLECTIONS OR NEW
DATA OR THEY MAY PROPOSE TO
ANALYZE EXISTING DATA. STUDIES
COULD INTERVENE AND STUDIES ARE
PRIMARILY ADDRESS ABLEISM TO
IMPROVE HEALTH OUTCOMES.
STUDIES COULD ALSO HAVE ABLEISM
AS ONE OF SEVERAL DETERMINANTS
OF HEALTH AND SO WHAT THOSE
STUDIES WOULD LOOK LIKE WOULD BE
SUCH THAT THEY HAVE ABLEISM AS
ONE OF THE OUTCOMES THAT THEY'RE
LOOKING AT, NOT ONE OF THE
OUTCOMES TO DETERMINE, BUT
THEY'RE LOOKING AT, HOWEVER,
THERE'S NO REQUIREMENT THAT THE
SOLE DETERMINANT BE ABLEISM. IT
CAN BE ONE OF SEVERAL
DETERMIN
DETERMINANTS. NEXT SLIDE,
PLEASE. IF STUDIES WERE PUT IN
A INTERVENTION SUCH THAT IT MUST
DIRECTLY ADDRESS THE CAUSE OR
MECHANISM OF ABLEISM, NOT HELP
INDIVIDUALS OF POPULATIONS WITH
DISABILITY COPE WITH ABLEISM.
INVESTIGATORS WILL COLLABORATE
WITH ORGANIZATIONS, AGENCIES OR
PROGRAMS AND INTERVENTIONS WILL
ENGAGE OTHER RELEVANT ACTORS.
FOR EXAMPLE, IN A SCHOOL SYSTEM
TEACHERS EXPECTED THAT TEACHERS
ARE INVOLVED, OR ENGAGED IN
WHATEVER SOLUTIONS THAT ARE
BEING PROPOSED AND IN HEALTH
CARE SYSTEMS, THERE'S THE
EXPECTATION THAT CLINICIANS WILL
BE ENGAGED AND SO ON. AND SO
THESE ENGAGEMENTS SHOULD BE
APPROPRIATE TO THE SETTING OF
INTERVENTION AND AGAIN, THEY
SHOULD AIM TO ENACT CHANGES TO
COMBAT ABLEST PRACTICES AND
POLICIES. INTERVENTION SHOULD
NOT ONLY TARGET PEOPLE WITH
DISABILITIES WHO ARE DIRECTLY
EXPERIENCING ABLEISM.
APPLICATIONS WILL INCLUDE A PLAN
TO INCLUDE LIVED EXPERIENCES AS
OTHER ATTACHMENT. NEXT SLIDE,
PLEASE. SO NICHD SPECIFIC
INTERESTS. NICHD IS INTERESTED
IN PROJECTS THAT FOCUS ON
ABLEISM WRODLY INCLUDING
DEVELOPING AND VALIDATING
MEASURES OF ABLEISM ACROSS AGES
AND THIS IS REALLY IMPORTANT.
SO IT'S IMPORTANT THAT FOLKS ARE
NOT THROWN BY THE WORD CHILD IN
THE NAME OF OUR INSTITUTE.
WE'RE INTERESTED IN APPLICATIONS
ACROSS AGES, ACROSS LEVELS OF
FUNCTIONING, ACROSS DIFFERENT
TYPES OF DISABILITIES.
INTERVENTIONS TO COMBAT ABLEISM
AT A HEALTH SYSTEMS LEVEL
INCLUDING THOSE THAT REDUCE
DIAGNOSTIC OVERSHADOWING.
INTERVENTION OF APPLICATIONS TO
HELP UNDERSTAND THE EFFECT OF
ABLEISM AND SELF-DETERMINATION
RELATED TO REPRODUCTION AND
REPRODUCTIVE HEALTH. AND
INTERVENTIONS TO REDUCE EFFECTS
OF ABLEISM ON ACCESS AND
REFERRAL TO ROUTINE PREVENTATIVE
CARE. TECHNOLOGY TO INCREASE
ACCESSIBILITY OF MEDICAL
EQUIPMENT, ESPECIALLY FOR
IMAGING TECHNOLOGY. EXAMPLES OF
NONRESPONSIVE APPLICATIONS WOULD
BE APPLICATIONS THAT FOCUS ON
REDUCING DISABILITY,
APPLICATIONS THAT ARE NOT
CONNECTED TO HEALTH OUTCOMES,
APPLICATIONS THAT FOCUS ON
DOCUMENTING HEALTH DISPARITIES
FOR PEOPLE DISANDS WITHOUT
REFERENCING ABLEISM. AND
PERSON'S EXPERIENCING ABLEISM
AND COMPLETELY IGNORE THE SYSTEM
WHERE ABLEISM IS BEING
PERPETUATED. NEXT SLIDE,
PLEASE. COMING FROM NEI COULD
NOT BE HERE SO I WILL TOUCH ON
THEIR SPECIFIC INTERESTS.
THEY'RE INTERESTED IN
APPLICATIONS, ADDRESSING
RESEARCH GAPS AND OPPORTUNITIES
TO UNDERSTAND AND OR MITIGATE
THE HEALTH IMPACTSES OF ABLEISM
ON PEOPLE WHO ARE BLIND ARE HAVE
LOW VISION. NONRESPONSIVE
APPLICATIONS TO NEI WOULD BE
THOSE PROPOSING CLINICAL TRIALS
THAT ARE GREATER THAN MINIMAL
RISK. AND WE'VE LINKED WHAT
CONSTITUTES APPLICATION GREATER
THAN MINIMAL RISK FOR NEI'S
POLICY. NEXT SLIDE, PLEASE.
I'LL TURN IT OVER TO MY
COLLEAGUE, DR. BITMAN TO ADDRESS
SPECIFIC INTERESTS.
>> THANKS TROYEN. SO NIBIB IS
PRIMARILY INTERESTED IN
APPLICATIONS THAT REDESIGN
MEDICAL TECHNOLOGIES. WE ARE
VERY ENTHUSIASTIC ABOUT
TECHNOLOGIES THAT INCORPORATE A
UNIVERSAL DESIGN APPROACH AND
AGAIN, IN LINE WITH THE OVERALL
MISSION OF THIS FUNDING
ANNOUNCEMENT, REDESIGN SHOULD
IMPROVE ACCESSIBILITY AND EASE
OF USE FOR ALL. WE HAVE SOME
CONSTRAINTS ON CLINICAL TRIALS
AND SO IF YOU ARE INTERESTED IN
NIBIB AND PURSUING A CLINICAL
TRIAL, DEFINITELY REACH OUT TO
US. WE ONLY SUPPORT EARLY STAGE
CLINICAL TRIAL APPLICATIONS SO
THESE ARE MORE FEASIBILITY IN
PHASE ONE IN HUMAN STUDIES AND
WE ONLY SUPPORT MECHANISTIC
TRIALS IF THE FOCUS IS ON
TECHNOLOGY DEVELOPMENT ITSELF.
THANK YOU.
>> THANKS. NEXT SLIDE, PLEASE.
AGAIN, COLLEAGUES FROM NATIONAL
CANCER INSTITUTE COULD NOT BE
HERE SO I WILL TOUCH ON THEIR
SPECIFIC INTEREST. NCI IS
INTERESTED IN APPLICATIONS THAT
ADDRESS HOW ABLEISM PREVENTS
BARRIERS TO TIMELY CANCER
PREVENTIVE CARE, SCREENING,
DIAGNOSIS, TREATMENT AND
FOLLOWUP AND IMPEDES ACCESS TO
AND DELIVERY OF CANCER CARE THAT
CONTRIBUTES TO HEALTH
DISPARITIES FOR PERSONS WITH
PHYSICAL MOBILITY AND/OR SENSORY
DISABILITIES. UNDERSTANDING HOW
THE INTERSECTION WITH ABLEISM
WITH OTHER FORMS OF OPPRESSION
PLAY OUT AND AFFECT THE QUALITY
OF CANCER PREVENTATIVE CARE,
DIAGNOSIS, TREATMENT AND
FOLLOWUP CARE. AND CONTRIBUTES
TO CANCER HEALTH DISPARITIES FOR
PEOPLE WITH DISABILITIES.
THEY'RE ALSO INTERESTED IN
DEVELOPING MODELS OF HEALTH CARE
DELIVERY THAT SUPPORT PEOPLE
WITH DISABILITIES RECEIVING
GUIDELINE CONCORDANT CANCER
CARE. NEXT SLIDE, PLEASE. I'LL
TURN IT OVER TO DR. ROBBINS.
>> NEXT SLIDE, PLEASE. SO NICHD
SIEVENT TIFK REVIEW BRANCH WILL
COORDINATE THE REVIEW OF THESE
APPLICATIONS SUBMITTED UNDER
THIS RFA. APPLICATIONS BEEN
ASSIGNED TO A SPECIAL EMPHASIS
PANEL REVIEW MEETING WHICH MEANS
THAT THE ROSTER WILL BECOME A
PART OF AN AGGREGATE ROSTER.
AND THE ADMINISTRATIVE REVIEW
WILL BE BASED ON THE
RFA-HD-24-007 REQUIREMENTS AND
THERE IS A LINK FOR THAT RFA
ALONG WITH A LINK FOR THE NIH
PEER REVIEW POLICIES AND
PROCEDURES. WE WILL
COLLECTIVELY -- WE WILL RECRUIT
SCIENTIFIC EXPERTISE BASED ON
THE CONTENTS OF THE APPLICATIONS
THAT HAVE BEEN RECEIVED. AT
LEAST THREE REVIEWERS WILL BE
ASSIGNED TO EACH APPLICATION AND
AS MANY OF YOU ARE PROBABLY WELL
AWARE, PLEASE DO NOT CONTACT ANY
MEMBERS OF THE REVIEW PANEL AND
POST SUBMISSION MATERIALS PER
NIH POLICY AND OT-OD-19-083.
LINKS FOR BOTH OF THESE WILL BE
MADE AVAILABLE. YOU WILL HAVE
30 DAYS PRIOR TO THE ACTUALLY
VIEW MEETING DATE TO SUBMIT ANY
POST SUBMISSION MATERIALS.
AGAIN, REVIEWERS WILL
CONSIDER THE CRITERIA DESCRIBED
IN THE RFA-HD-24-007 TO
DETERMINE THE MERIT. WE
ENCOURAGE YOU TO CAREFULLY READ
SECTION 5 AND SPECIFICALLY AGAIN
LOOK AT THE QUESTIONS THAT
REVIEWERS WILL BE ASKED TO
CONSIDER WHEN THEY REVIEW THESE
APPLICATIONS. IF PROPOSING A
CLINICAL TRIAL ADDRESS THE
SPECIFIC QUESTIONS RELATED TO
CLINICAL TRIALS. REVIEWERS WILL
PROVIDE AN OVERALL IMPACT SCORE
REFLECTING THEIR ASSESSMENT OF
THE LIKELIHOOD OF THE PROJECT,
WHETHER THE PROJECT WILL EXERT A
SUSTAINED POWERFUL INFLUENCE ON
THE RESEARCH FIELD AND THEY WILL
ALSO GIVE INDIVIDUAL CRITERIA
SCORES FOR SIGNIFICANCE,
INVESTIGATOR, INNOVATION
APPROACH AND ENVIRONMENT. NEXT
SLIDE, PLEASE. SPECIFIC TO THIS
RFA, THERE ARE SOME KEY ITEMS
THAT YOU SHOULD CONSIDER WHEN
SUBMITTING YOUR APPLICATION.
DOES THE APPLICATION INCORPORATE
PEOPLE WITH LIVED EXPERIENCE IN
A WAY THAT INFORMS THE
SCIENTIFIC AIMS OF THE
APPLICATION AND INCREASES OR
VALIDATES THE POTENTIAL IMPACT
OF THE APPLICATION AND YOU
SHOULD ALSO CONSIDER IF AN
INTERVENTION IS PROPOSED, DOES
THE PROPOSED INTERVENTION HAVE
THE POTENTIAL TO BE WILDLY
ADOPTED AND THERE BY IMPROVE THE
HEALTH OF A BROAD SPECTRUM OF
PEOPLE WITH DISABILITIES.
PLEASE REFER TO THE ADDITIONAL
REVIEW CRITERIA THAT ARE LISTED
IN THE RFA. AS MANY OF YOU ARE
WELL AWARE NIH UTILIZES A
NINE-POINT RATING SCALE. ONE TO
NINE, ONE BEING EXCEPTIONAL.
NINE BEING POOR FOR ALL -- AND
WE WILL BE USING THIS SCALE FOR
ALL OF THESE APPLICATIONS. WE
HAVE A LINK THAT GIVES YOU THE
SCALE ALONG WITH THE OVERALL
IMPACT SCORES AND AGAIN, EACH
ASSIGNED REVIEWER WILL GIVE A
SCORE FOR EACH OF THE CRITERIA
OF SIGNIFICANCE, INVESTIGATOR
INNOVATION APPROACH AND
ENVIRONMENT. IN ADDITION TO A
PRELIMINARY OVERALL IMPACT
SCORE. THE PRELIMINARY SCORES
WILL ACTUALLY DETERMINE WHICH
APPLICATIONS WILL BE DISCUSSED
AT THE REVIEW MEETING ALL OF THE
REVIEWERS THAT ARE NOT IN
CONFLICT WITH AN APPLICATION
WILL PROVIDE A FINAL IMPACT
SCORE AND YOUR FINAL, FINAL
IMPACT SCORE WILL THEN BE BASED
ON THE AVERAGE OF ALL THE VOTING
REVIEWERS MULTIPLIED BY TEN.
THE FINAL IMPACT STORE WILL BE
RELEASED WITHIN THREE BUSINESS
DAYS AFTER THE REVIEW MEETING
HAS CONCLUDED AND YOUR SUMMARY
STATEMENT CAN BE FOUND IN YOUR
COMMENTS ACCOUNT. TYPICALLY
IT'S WITHIN 30 DAYS. EACH
INSTITUTE DOES IT A LITTLE BIT
DIFFERENT THAN CSR SO IT COULD
BE ANYWHERE BETWEEN 4 TO 6
WEEKS. NOTE THAT IMPACT SCORES
ARE NOT PROVIDED FOR
APPLICATIONS THAT ARE NOT
DISCUSSED AT THE REVIEW MEETING.
NEXT SLIDE, PLEASE. WE'VE
PROVIDED YOU WITH SOME
ADDITIONAL RESOURCES RELATED TO
PEER REVIEW AND LINKS SO THE
CENTER FOR SCIENTIFIC REVIEW HAS
A SERIES OF WEBINARS AND VIDEOS
TO PROVIDE INSIGHT INTO THE NIH
GRANT APPLICATION REVIEW. WE
ALSO LISTED NICHD SCIENTIFIC
REVIEW BRANCH AND RESOURCES FOR
USING ERA COMMONS AS WELL AS A
LINK FOR SUBMISSION -- ANY
PROBLEMS WITH THE SUBMISSION
PROCESS AND AS ALWAYS, REKWER --
REFER TO THE SERVICE DESK WHEN
SUBMITTING YOUR APPLICATIONS.
AND I BELIEVE THAT IS IT.
>> THANKS SO MUCH. NEXT SLIDE,
PLEASE. KEY DATES. SO THE RFA
WAS ORIGINALLY POSTED
AUGUST 14TH, 2023. LETTERS OF
INTENT WERE DUE ON OCTOBER 30TH.
HOWEVER, WE'VE BEEN FAIRLY
FLEXIBLE ON THOSE AND I WANT TO
NOTE THAT LETTERS OF INTENT ARE
NOT REQUIRED. THEY'RE JUST --
THEY HELP US PLAN IN TERMS OF
PREPARING FOR THE APPLICATIONS
THAT WILL COME IN RECRUITING
REVIEWERS AND HOW MANY TO REVIEW
AND SO ON. SO IT'S NOT A
REQUIREMENT AND SO IF YOU
HAVEN'T SUBMITTED ONE, THERE ARE
NO PENALTY OR CONSEQUENCES,
ADVERSE CONSEQUENCES FOR NOT
HAVING SUBMITTED A LETTER OF
INTENT. THE APPLICATION DUE
DATE IS NOVEMBER 29TH. THE
SCIENT
SCIENTIFIC MERIT REVIEW DATE IS
MARCH 2024. NEXT SLIDE.
PLEASE. AND THAT CONCLUDES THE
PRESENTATION. SO WE'LL NOW
LEAVE THE FLOOR OPEN. IT'S
GREAT THAT WE HAVE A LOT OF TIME
TO ENTERTAIN QUESTIONS SO PLEASE
FEEL FREE TO POSE YOUR
QUESTIONS. AND I'LL START. SO
THE FIRST QUESTION YOU HAVE, IF
THE PANELISTS DON'T MIND COMING
OFF MUTE TO ANSWER THE QUESTIONS
LIVE, THAT WOULD BE WONDERFUL.
ALTHOUGH THE FOCUS IS ON
PHYSICAL DISABILITIES, WOULD IT
BE APPROPRIATE TO ADDRESS
ABLEISM IN THE CONTEXT OF
COGNITIVE AND/OR BEHAVIORAL
IMPAIRMENTS.
>> CAN I HOP IN HERE?
>> ABSOLUTELY.
>> AND CAN WE TAKE DOWN THE
SLIDE SO PEOPLE CAN SEE US
BETTER? HI, EVERYONE. I'M
LOOKING AT THE WRONG CAMERA.
HI, I'M TERESA CRUZ. I'M A
MIDDLE AGED WHITE WOMAN WITH
SHOULDER LENGTH BROWN HAIR AND
BLUE EYES. I'VE GOT A GRAY
JACKET ON TODAY WITH A PURPLE
FLOWERY TOP AND MY BACKGROUND IS
THE BLUE ZOOM BACKGROUND FOR
NICHD. I JUST WANTED TO SAY I'M
SO THANKFUL FOR TOYIN AND THE
REST OF THE TEAM FOR PUTTING
TOGETHER THIS WEBINAR AND FOR
ALL OF YOU TO SHOW UP ON SUCH
SHORT NOTICE AND I'M JUST BLOWN
AWAY BY THE RESPONSE TO THIS AND
HOW MANY PEOPLE ARE HERE. SO
THANK YOU. SO I WOULD SAY THAT
THERE IS A LINE IN THE RFA THAT
SAYS NCMRR'S MISSION IS AROUND
PHYSICAL DISABILITY BUT THAT IS
NOT TRUE FOR ALL OF THE ICE
INSTITUTES AND CENTERS WHO ARE
PARTICIPATING. OF COURSE THE
EYE INSTITUTE HAS INTEREST IN
SENSORY DISABILITIES SO I -- WE
ARE TAKING DISABILITY IN A
BROADER CONTEXT. SO I WOULDN'T
FOCUS TOO DEEPLY ON THAT. OKAY.
I SEE A QUESTION FROM JAY
KENNEDY. HEY, JAY. WHAT
HAPPENS IF THE GOVERNMENT SHUTS
DOWN? SO OFFICIALLY WE DON'T
TALK ABOUT BRUNO. THAT'S OUR
POLICY. WE WILL HAVE GUIDANCE
IF THAT HAPPENS. OF COURSE WE
ARE NOT PLANNING FOR THAT TO
HAPPEN AND WE, YOU KNOW, EXPECT
TO GET FUNDING AND TO REMAIN
OPEN. BUT THERE WILL BE
GUIDANCE FROM NIH FOR ALL
SUBMISSIONS IF THERE IS A
SHUTDOWN. WANT ME TO KEEP
GOING, TOYIN, GIVE YOU A BREAK?
>> YEAH. PLEASE. GOR FOR IT.
>> OKAY. AND IS THERE A PLAN TO
REOPEN THIS NOFO AND ALLOW FOR
RESUBMISSIONS? WE HAVE ONE DUE
DATE RIGHT NOW. THERE IS NO
PLAN FOR ALLOWING -- FOR A
REISSUE OF THIS SPECIFIC NOFO.
BUT YOU CAN USE PARENT
ANNOUNCEMENTS FOR THE RO1 TO
EITHER PUT IN A NEW SUBMISSION
ON THIS TOPIC OR A RESUBMISSION
WITHIN THE ALLOWABLE TIMEFRAME.
AND THAT'S ALL I CAN SAY ON THAT
RIGHT NOW. OKAY. THERE'S A
QUESTION, COULD YOU REVIEW THE
KEY ITEMS TO CONSIDER, PLEASE?
SO I WOULD DIRECT YOU TO THE
FIVE REVIEW CRITERIA THAT NIH
HAVE. SIGNIFICANCE, INNOVATION,
INVESTIGATOR, APPROACH AND
ENVIRONMENT AS WELL AS THE
ADDITIONAL PLAN FOR INCLUDING
LIVED EXPERIENCE, SO SECTION 5
OF THE NOFO GOES THROUGH THE
QUESTIONS THAT THE REVIEWERS ARE
GOING TO BE ADDRESSING IN THAT
REVIEW. THERE IS A QUESTION
THAT SAYS IT LOOKS LIKE THE
DATES GO THROUGH 2026. I THINK
WE'RE LOOKING AT DIFFERENT
THINGS. OURS IS A ONE-TIME DUE
DATE, NOVEMBER 29TH, 2023. AND
THEN IT EXPIRES THE NEXT DAY.
I'M NOT QUITE SURE THAT WE'RE
LOOKING AT THE SAME FUNDING
OPPORTUNITY. WE HAVE A
QUESTION, DOES EXPLORING RACIAL
DISPARITY AMONG PERSONS WITH
DISABILITY AND ACCESS TO CARE
CONSIDER -- SORRY. WILL
EXPLORING RACIAL DISPARITY AMONG
PERSONS WITH DISABILITY AND
ACCESS TO CARE WILL CONSIDER
ABLEISM ASPECT OF THIS RFA? IS
THERE ANY TEMPLATE FOR A LIVED
EXPERIENCE? SO I'LL ANSWER THE
SECOND PART. NO, WE DON'T HAVE
A TEMPLATE, BUT WE HAVE USED
THIS LANGUAGE BEFORE IN OUR
PHYSICAL ACTIVITY FOR WHEELCHAIR
USERS, RFA A COUPLE OF YEARS AGO
AS WELL AS DOD HAS SOME REALLY
GOOD LANGUAGE ABOUT
INCORPORATING PERSONS WITH LIVED
EXPERIENCE. SO THE FIRST
QUESTION ABOUT THE RACIAL
DISPARITIES AND THE INTERSECTION
WITH DISABILITY, SO I THINK
WE'VE LAID OUT THAT YOU CAN BE
LOOKING AT THAT INTERSECTION SO
WE'RE -- WE UNDERSTAND THAT
DISABILITIES IS ONE ASPECT OF A
PERSON'S IDENTITY SO WE DON'T
WANT TO EXCLUDE THE OTHERS. I
WILL SAY THAT THERE IS A PROGRAM
ANNOUNCEMENT THAT NINHD HAS PUT
OUT THAT DOES HAVE MULTIPLE DUE
DATES PER YEAR AND TOYIN, I
DON'T KNOW IF YOU CAN GET THAT
RFA -- OR THAT NOFO LIKE THAT IS
SPECIFICALLY LOOKING AT THE
INTERSECTION OF MULTIPLE
MARGINALIZED IDENTITIES. SO
THAT MIGHT BE ANOTHER
OPPORTUNITY FOR YOU TO LOOK AT.
OKAY. FOR NICHD WILL
UTILIZATION OF PREVENTIVE CARE
SERVICES AND SCREENINGS AND/OR
HOSPITALIZATIONS AND EMERGENCY
DEPARTMENT USAGES BE INCLUDED?
THE REQUIREMENT TO ADDRESS
PUB
PUBLIC -- VERSUS OUTCOMES. I'M
HAVING A LITTLE TROUBLE
FOLLOWING THIS QUESTION. BUT
YES, I WOULD SAY IF YOU ARE
LOOKING AT THE USE OF PREVENTIVE
CARE SERVICES AND SCREENINGS, BY
PEOPLE WITH DISABILITIES, THEN
YES, THAT WOULD FALL -- IN
ADDRESSING IT WITH THE LENS OF
ABLEISM, THEN THAT WOULD BE
APPROPRIATE. THIS IS TO MY
TEAM. CAN EVERYBODY SEE THE Q&A
OR IS IT JUST WHAT I'M READING?
CAN THE ATTENDEES SEE THE Q&A?
>> UNFORTUNATELY THE ATTENDEES
CANNOT SEE THE Q&A. ONLY THE
PANELISTS CAN SEE THE Q&A. SO
EVERYBODY KNOWS I AM READING
THEM IN ORDER. I'M NOT SKIPPING
ANY. SO I JUST BE PATIENT WITH
ME. THERE'S A FEW MORE. OKAY.
WILL THE PROGRAM DIRECTOR BE
ABLE TO HELP US TO DETERMINE
WHETHER AN IDEA MATCHES THIS
FUNDING PROGRAM? YES, YES, YES.
PLEASE, IF YOU'RE NOT SURE,
PLEASE SEND YOUR ABSTRACT OR
YOUR, YOU KNOW, SPECIFIC AIMS OR
A COUPLE OF SENTENCES TO TOYIN.
THERE ARE OTHER CONTACTS FOR THE
OTHER ICS AS WELL LIKE WE HAVE
MORIA ON, SO WE WOULD BE HAPPY
TO TAKE A LOOK AND GIVE YOU
FEEDBACK ABOUT WHETHER YOUR
PROJECT IS APPROPRIATE FOR THIS
PARTICULAR RFA AND IF IT'S NOT,
TO DIRECT YOU TO OTHER
OPPORTUNITIES. THAT WOULD BE A
BETTER MATCH. SO PLEASE DO
THAT. OKAY. SOMEONE IS
INTERESTED IN EXPLORING -- OR
DEVELOPING ABLEISM INSTRUMENTS
FOR YOUTH. THE SLIDE AT THE
BEGINNING SAYS ACROSS ALL AGES.
WOULD A FOCUS ON YOUTH BE
UNRESPONSIVE? NO. THAT --
ACROSS ALL AGES IS TO INDICATE
THAT WE ARE NOT ONLY LOOKING AT
CHILD HEALTH, SO IF YOU HAD A
SPECIFIC CHILD OR ADOLESCENT OR
ADULT OR OLDER ADULT OUTCOME OR
POPULATION, ALL OF THOSE WOULD
BE APPROPRIATE. CAN YOU
DESCRIBE HOW YOU ARE EVALUATING
THE INCORPORATION OF LIVED
EXPERIENCE? SO WHEN YOU GO TO
SECTION 5, THERE ARE SPECIFIC
PARTS -- I DON'T REMEMBER WHICH
CRITERIA OR IF IT'S -- IT'S ONLY
UNDER ONE.
>> SIGNIFICANCE.
>> OKAY. SO IF YOU LOOK AT THE
REVIEW CRITERIA, THE
SIGNIFICANCE, THERE'S A COUPLE
SENTENCES THAT ADDRESS -- OR
QUEUE THE REVIEWER TO LOOK AND
ASK QUESTIONS ABOUT THE LIVED
EXPERIENCE, SO WE ARE
INCORPORATING THAT INFORMATION
INTO THE SIGNIFICANCE SCORE.
THANK YOU, TOYIN. WILL WE
RECEIVE ANY FEEDBACK FROM OUR
LETTER OF INTENT? NO, GENERALLY
NOT. IF SOMETHING IS CLEARLY
NOT A GOOD MATCH, THE PROGRAM
OFFICER WILL LET YOU KNOW THAT.
BUT WE'RE NOT GOING TO GIVE
SCIENTIFIC FEEDBACK ON THE IDEAS
THAT ARE PUT FORWARD. WE WOULD
ONLY SAY WHETHER IT WAS
APPROPRIATE OR NOT.
>> I WONDER IF THEY'RE ASKING --
SO IF -- IF YOU SENT A LETTER OF
INTEREST AND NEVER SENT IN
THE -- SO FOLKS HAVE SOME OF
LOIS HAVE HEARD FROM ME WHERE I
ACKNOWLEDGE RECEIPT. HOWEVER,
IF YOU WANTED FEEDBACK ON
ALIGNMENT BETWEEN YOUR SPECIFIC
AIMS AND THE RFA, THAT'S A
DIFFERENT CONVERSATION. SO
PLEASE REACH OUT AND SEND YOUR
AGENT AND THEN REQUEST A CALL
AND I'LL BE MORE THAN HAPPY TO
DO THAT.
>> THANK YOU, TOYIN. THERE'S A
QUESTION ABOUT WHETHER AN
INTERVENTION CAN BE KIND OF
PRETEST, POST TEST SURVEY OR
DOES IT HAVE TO BE A RANDOMIZED
CONTROL TRIAL GIVEN THAT THIS IS
NIH. WE DO NOT PRESCRIBE THE
TYPE OF APPROACH ANYONE HAS TO
TAKE BUT IT SHOULD BE
SCIENTIFICALLY RIGOROUS SO
DEPENDING ON THE SITUATION, THE
INTERVENTION, THE AMOUNT OF
PRELIMINARY DATA, YOU KNOW,
THERE ARE -- THERE ARE LOTS OF
OPTIONS FOR STUDY DESIGN, SO I
WOULD SAY WE DO NOT REQUIRE IT
TO BE AN RTC. THAT MAY NOT BE
APPROPRIATE IN SOME CASES.
RIGHT? SO IT'S UP TO THE
APPLICANT TO SELECT THE STUDY
DESIGN THAT THEY THINK IS MOST
APPROPRIATE TO ANSWER THEIR
SPECIFIC SCIENTIFIC QUESTION AND
THEN DEFEND THAT. OKAY. I
THINK THAT WAS THE LAST QUESTION
SO WE'RE GOING TO HANG OUT FOR
ANOTHER TWO MINUTES. JUST
KIDDING. THERE'S ANOTHER
QUESTION. WILL THE SLIDES FROM
TODAY BE SENT OUT OR MADE
AVAILABLE? YES. SO THE -- ONCE
WE HAVE THE RECORDING, EVERYONE
WHO REGISTERED WILL GET A COPY
OF THE SLIDES BECAUSE WE DID
HAVE A LOT OF HOT LINKS IN THERE
AS WELL AS A LINK TO THIS
RECORDING. IS THAT RIGHT,
TOYIN?
>> THAT'S RIGHT.
>> OKAY. GOOD.
>> AND I WANTED TO ADDRESS THE
OTHER QUESTION I RECEIVED VIA
E-MAIL AND THE PI COLLABORATING
WITH A DISABILITIES ADVOCACY
GROUP, BUT THE GROUP OR
ORGANIZATION DOESN'T HAVE A UEI
NUMBER WHICH IS A UNIQUE ENTITY
IDENTIFIER. AND THEY WANTED TO
KNOW HOW THEY WOULD THEN BUDGET
TO PAY THE ORGANIZATION. SO I
REACHED OUT THE OUR BUDGET
OFFICE. MY INITIAL ANSWER WAS
THAT THEY WOULD HAVE TO HAVE A
UEI NUMBER AND THAT'S THE POLICY
SO IF AN ORGANIZATION IS TO
RECEIVE A SUBCONTRACT UNDER
FEDERALLY FUNDED GRANT, THEY
WOULD HAVE TO HAVE A EUI NUMBER.
HOWEVER, IF THEY DO HAVE A UEI
NUMBER IT CAN BE BUDGETED AS A
FEE FOR SERVICE. SO I WANTED
TO -- I THOUGHT I WOULD VISIT
THAT FOR THE BENEFIT OF THOSE
WHO MAY BE IN THAT SITUATION
WHERE THE ORGANIZATIONS THEY'RE
WORKING WITH DON'T HAVE A UEI
NUMBER.
>> GREAT COMMENT. THANK YOU,
TOYIN. OKAY. WE'RE SEEING
GENERAL EXCITEMENT ABOUT THIS
OPPORTUNITY. ARE ALL METHODS
ALLOWABLE? CAN STUDIES BE
QUALITA
QUALITATIVE? AGAIN, IT IS UP TO
EACH INDIVIDUAL PI AND THEIR
TEAM AND THE PROJECT, THE
QUESTION BEING, YOU KNOW,
ADDRESSED TO SELECT THE MOST
APPROPRIATE STUDY, DESIGN AND
THEN TO DEFEND THAT. SO WE'RE
NOT PRESCRIBING ANY PARTICULAR
TYPE OF STUDY. OKAY. WE GOT A
QUESTION ABOUT INTERNATIONAL
RESEARCH. SO WE HAVE LIMITED
THIS RFA TO DOMESTIC APPLICANTS.
BUT YOU CAN HAVE FOREIGN
SUBCONTRACTS. I THINK THERE
ARE, YOU KNOW, SOME CASES WHERE,
YOU KNOW, ABLEISM IS UNIVERSAL
AND OTHERS WHEN IT'S SPECIFIC TO
THE U.S. SO I WOULD JUST BE
VERY MINDFUL THAT, YOU KNOW,
FOREIGN STUDIES SHOULD HAVE
APPLICABILITY TO THE U.S.
POPULATION TO HAVE PRIORITY
HERE. FOR THIS PARTICULAR RFA.
MORIA, DID YOU WANT TO ADD
ANYTHING OR CHRISTIAN?
>> I -- I DON'T HAVE ANYTHING.
THIS IS MORIA SPEAKING. I DON'T
HAVE ANYTHING ADDITIONAL. JUST
REITERATING THAT WE ARE HERE TO
HELP YOU AND BOTH, YOU KNOW,
REGARDLESS OF IF IT'S A FIT FOR
THIS FUNDING OPPORTUNITY, WE'RE
ALSO HERE TO FIND A HOME FOR
YOUR RESEARCH, SO DON'T BE
AFRAID OF REACHING OUT TO US.
IF YOU DON'T GET A RESPONSE
RIGHT AWAY DON'T BE AFRAID OF
REACHING OUT TO US AGAIN,
BECAUSE OUR HOPE IS TO RESPOND
QUICKLY TO EVERYONE, BUT WE'RE
HUMAN AND SOMETIMES MISS THINGS
AS WELL. THANKS.
>> THANKS MORIA.
>> SO I ACTUALLY -- I APOLOGIZE
THAT I DID NOT DESCRIBE MYSELF
INITIALLY. I AM BEYOND MIDDLE
AGED. I'M WEARING CAUCASIAN
OLDER WOMAN. I HAVE LONG HAIR
AND I'M WEARING A PONYTAIL TODAY
WEARING GLASSES AND A DARK BLUE
SHIRT AND I ACTUALLY JUST SEE A
QUESTION UP ASKING ABOUT WHETHER
WE WILL HAVE SCHOLARS WITH
DISABILITIES THAT WILL BE
INCLUDED IN THE APPLICATION
REVIEW. SO MY INITIAL RESPONSE
TO THAT IS THAT WE ACTUALLY HAVE
NO WAY OF RECRUITING REVIEWERS
THROUGH THE TYPICAL NIH FASHION
OR SYSTEM WHERE INDIVIDUALS ARE
ACTUALLY IDENTIFIED AS HAVING A
DISABILITY. IF WE ARE AWARE OF
INDIVIDUALS IN THE COMMUNITY
THAT HAVE THE SCIENTIFIC
EXPERTISE TO EVALUATE
APPLICATIONS THAT ARE SUBMITTED
THAT DO HAVE DISABILITIES, I
MEAN, THEY WOULD BE OF COURSE
RECRUITED JUST AS ANYONE ELSE
THAT HAS AGAIN, THE SCIENTIFIC
EXPERTISE.
>> I WILL SAY THAT PROGRAM IS
GOING TO WORK WITH REVIEW ON
THIS TO HELP THEM IDENTIFY
REVIEWERS BECAUSE WE DON'T HAVE
ACCESS TO THAT INFORMATION. BUT
WE KNOW MANY OF YOU AND WE KNOW
THAT THIS IS REALLY IMPORTANT SO
WE -- WE SHARE THAT. WE ARE
WORKING ON IT BUT WE'RE NOT
GOING TO BE ABLE TO GIVE A
REPORT AT THE END THAT SHOWS THE
NUMBER OF PEOPLE WITH DISABILITY
ON THE REVIEW PANEL IN PART
BECAUSE IT'S GOING TO BE AN
AGGREGATE REVIEW ROSTER THAT'S
GOING TO INCLUDE PEOPLE FROM ALL
OF THE NICHD SECTS, THAT ROUND.
SO IT'S PROBABLY GOING TO HAVE
HUNDREDS OF NAMES ON IT, WHICH
IS NIH POLICY. BUT WE ASSURE
YOU WE'RE WORKING WITH REVIEW
AND WE KNOW IT'S IMPORTANT.
OKAY. AND THEN WE HAVE A
QUESTION ABOUT RESUBMISSIONS
THROUGH OTHER CHANNELS. YES, SO
IF AN APPLICATION IS NOT
SELECTED FOR FUNDING, THEN
PLEASE USE THE REVIEW, THE
FEEDBACK FROM THE SUMMARY
STATEMENT, REACH OUT TO YOUR
PROGRAM OFFICER AND THEY CAN
WORK WITH YOU ON HOW TO
REPACKAGE IT, ADDRESS REVIEWERS'
CONCERNS, AND COME BACK THROUGH
OTHER OPPORTUNITIES. OKAY. DO
EARLY INVESTIGATORS HAVE AN
ADVANTAGE IN THIS APPLICATION?
SO WE LOVE TO SEE APPLICATIONS
FROM EARLY STAGE INVESTIGATORS.
TYPICALLY THAT IS ONE OF THE
CONSIDERATIONS THAT WE WILL USE
AS PROGRAM OFFICERS IN MAKING
FUNDING DECISIONS. IT'S NOT
GOING TO BE LIKE IN SOME ICS FOR
THEIR PARENT ANNOUNCEMENTS HAVE
DIFFERENTIAL PAY LINES THAT I
CAN SAY WE'RE GOING TO GIVE ESIS
AN EXTRA FIVE POINTS BECAUSE
THIS IS A SPECIAL ONE-TIME
APPLICATION PROCESS. BUT ESI
STATUS IS SOMETHING THAT WE TAKE
A LOOK AT, YES. OKAY. Q&A
SEEMS QUIET. I'LL GIVE IT ONE
MORE MINUTE. AND OF COURSE IF
WE TURN THIS OFF AND YOU THINK
OF SOMETHING, YOU GUYS HAVE
TROYEN'S E-MAIL AND YOU CAN
FOLLOW UP WITH HIM.
>> ABSOLUTELY. AGAIN, I WANT
TO -- I WANT TO THANK CHRISTIAN,
MORIA AND OF COURSE TERESA FOR
JOINING THE DISCUSSION AND THE
PRESENTATION. I ALSO WANT TO
NOTE THAT THE RFA DOESN'T MARK
THE BEGINNING AND THIS IS WHAT
I'VE TOLD ALL THE TEAMS I'VE MET
WITH. DOESN'T MARK THE
BEGINNING OR END OF INTEREST IN
THE TOPIC. SO PLEASE CONTINUE
TO ENGAGE. FEEL FREE TO REACH
OUT IF YOU HAVE QUESTIONS AS YOU
PUT YOUR TEAMS TOGETHER AND
DRAFT YOUR APPLICATION. I WANT
TO THANK THE TECHNICAL SUPPORT
TEAM FOR MAKING THIS MEETING
HAPPEN. AND WE'LL CLOSE THE
WEBINAR.
THANK YOU.