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SUMMARY:Development of an NIA Practice-Based Research Network to Conduct Alzheimer’s and Related Dementias Clinical Research
DTSTART:20210430T180000Z
DTEND:20210430T210000Z
DTSTAMP:20210506T155500Z
UID:Videocast--41795
LOCATION:https://videocast.nih.gov/watch=41795
DESCRIPTION:NIA\, NIH\nOverview: NIA will be hosting a virtual meeting to discuss the potential and planning of a practice-based research network (PBRN) to address the disparities gap with the recruitment and retention of diverse and underserved populations to AD/ADRD clinical research studies.PBRNs are groups of health care clinicians and practices working together to answer community-based health care questions and translate research findings into practice—they have the potential to directly engage diverse and underserved communities in AD/ADRD clinical research. Attendees will leave with a clear understanding of what a PBRN is\, learn about NIH and external PBRN examples\, and provide input for future considerations regarding the use of a PBRN. Rationale: In October 2018\, the National Institute on Aging (NIA) and its partners released Together We Make the Difference: National Strategy for Recruitment and Participation in Alzheimer’s and Related Dementias Clinical Research\, an overarching plan to address four themes:
- increase awareness and engagement at a broad\, national level
- build and improve capacity and infrastructure at the study site level
- engage local communities and support participants
- develop an applied science of recruitment.
Data indicate that Blacks/African Americans\, Latinos/Hispanic Americans\, Asian American and Pacific Islanders (AAPI)\, and other minority populations are substantially underrepresented in AD/ADRD clinical studies and that too few clinical studies and limited research infrastructure are available in their communities. A long-term solution is to invest in efforts that will build sustainably and mutually beneficial relationships within diverse and underserved communities.Keynote Speakers: Lori Minasian\, M.D. and Jonathan Tobin\, Ph.D. Panel Speakers: Jennifer Manly\, Ph.D.\, Andrea Gilmore-Bykovskyi\, Ph.D.\, RN\, and Jonathan Jackson\, Ph.D.
Agenda: Forthcoming\n
X-ALT-DESC;FMTTYPE=text/html:\n\n\nAuthor: NIA\, NIH
Description: Overview: NIA will be hosting a virtual meeting to discuss the potential and planning of a practice-based research network (PBRN) to address the disparities gap with the recruitment and retention of diverse and underserved populations to AD/ADRD clinical research studies.PBRNs are groups of health care clinicians and practices working together to answer community-based health care questions and translate research findings into practice—they have the potential to directly engage diverse and underserved communities in AD/ADRD clinical research. Attendees will leave with a clear understanding of what a PBRN is\, learn about NIH and external PBRN examples\, and provide input for future considerations regarding the use of a PBRN. Rationale: In October 2018\, the National Institute on Aging (NIA) and its partners released Together We Make the Difference: National Strategy for Recruitment and Participation in Alzheimer’s and Related Dementias Clinical Research\, an overarching plan to address four themes:
- increase awareness and engagement at a broad\, national level
- build and improve capacity and infrastructure at the study site level
- engage local communities and support participants
- develop an applied science of recruitment.
Data indicate that Blacks/African Americans\, Latinos/Hispanic Americans\, Asian American and Pacific Islanders (AAPI)\, and other minority populations are substantially underrepresented in AD/ADRD clinical studies and that too few clinical studies and limited research infrastructure are available in their communities. A long-term solution is to invest in efforts that will build sustainably and mutually beneficial relationships within diverse and underserved communities.Keynote Speakers: Lori Minasian\, M.D. and Jonathan Tobin\, Ph.D. Panel Speakers: Jennifer Manly\, Ph.D.\, Andrea Gilmore-Bykovskyi\, Ph.D.\, RN\, and Jonathan Jackson\, Ph.D.
Agenda: Forthcoming
CIT Live ID: 41795
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DESCRIPTION:Videocast:Development of an NIA Practice-Based Research Network to Conduct Alzheimer’s and Related Dementias Clinical Research
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