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Given a Voice: An Update on the NIH-Lacks Family Partnership

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Air date: Friday, July 21, 2017, 1:30:00 PM
Time displayed is Eastern Time, Washington DC Local
Views: Total views: 694, (456 Live, 238 On-demand)
Category: Special
Runtime: 00:56:48
Description: Information on the partnership between the NIH and the family of Henrietta Lacks.

Speakers:
Francis S. Collins, M.D., Ph.D., NIH Director
David Lacks, Jr., grandson of Henrietta Lacks
Jeri Lacks-Whye, granddaughter of Henrietta Lacks
Dina Paltoo, Ph.D., M.P.H., Office of Science Policy, NIH

Dr. Paltoo will highlight the origins of HeLa cells, which derived from the tumor of the late Henrietta Lacks and have been used extensively in biomedical research for the past 60 years. Dr. Paltoo will discuss the formation of the NIH-Lacks Family Partnership when the HeLa genome became public, and the integral involvement of Lacks family members in deciding how the whole genome data from these cells can be used. Dr. Collins will moderate a conversation with Jeri Lacks-Whye and David Lacks focused on the partnership.
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NLM Title: Given a voice : an update on the NIH-Lacks family partnership / Francis S. Collins, David Lacks, Jr., Jeri Lacks-Whye, Dina Paltoo.
Author: Collins, Francis S.
Lacks, David.
Lacks-Whye, Jeri.
Paltoo, Dina.
National Institutes of Health (U.S.),
Publisher:
Abstract: (CIT): Information on the partnership between the NIH and the family of Henrietta Lacks. Speakers: Francis S. Collins, M.D., Ph.D., NIH Director, David Lacks, Jr., grandson of Henrietta Lacks, Jeri Lacks-Whye, granddaughter of Henrietta Lacks, Dina Paltoo, Ph.D., M.P.H., Office of Science Policy, NIH. Dr. Paltoo will highlight the origins of HeLa cells, which derived from the tumor of the late Henrietta Lacks and have been used extensively in biomedical research for the past 60 years. Dr. Paltoo will discuss the formation of the NIH-Lacks family partnership when the HeLa genome became public, and the integral involvement of Lacks family members in deciding how the whole genome data from these cells can be used. Dr. Collins will moderate a conversation with Jeri Lacks-Whye and David Lacks focused on the partnership.
Subjects: Government Agencies
HeLa Cells
Informed Consent--history
Public-Private Sector Partnerships
United States
Publication Types: Lectures
Webcasts
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NLM Classification: QU 300
NLM ID: 101710195
CIT Live ID: 24809
Permanent link: https://videocast.nih.gov/launch.asp?23402