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Ethics Rounds: Presenting Patient Level Data: Can We Ensure Respect and Protection?

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Air date: Wednesday, April 5, 2017, 12:00:00 PM
Time displayed is Eastern Time, Washington DC Local
Views: Total views: 210, (150 Live, 60 On-demand)
Category: Clinical Center Grand Rounds
Runtime: 00:58:00
Description: Ethics Rounds: Presenting Patient Level Data: Can We Ensure Respect and Protection?

Is it problematic if patients can identify themselves in a grand rounds presentation or a scientific publication? Should consent be required to present information about individual patients and, if so, should patients be able to block presentations they don’t like? Medicine and research, from clinical rounds to grand rounds, from scientific conferences to scientific publications, rely on the presentation of individual patients. Yet, surprisingly, there are no consensus guidelines on how these issues should be handled. Please join us for discussion of a fascinating case that highlights the challenges clinicians and researchers face when trying to present patient information in a way that ensures respect and protection without undermining clinical education or clinical research.

Presenter: Jennifer Couzin-Frankel, Staff Writer, Science

Discussant: Jonathan Kimmelman, PhD, Associate Professor, Biomedical Ethics Unit and Social Studies of Medicine, McGill University School of Medicine and Director, Studies on Translation, Ethics, and Medicine (STREAM)

The program should be of interest to individuals involved in clinical care and clinical research, as well as those interested in important issues in bioethics.

For more information go to http://www.cc.nih.gov/about/news/grcurrent.html
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NLM Title: Presenting patient level data : can we ensure respect and protection? / Jonathan Kimmelman, Jennifer Couzin-Frankel.
Author: Kimmelman, Jonathan.
Couzin-Frankel, Jennifer.
National Institutes of Health (U.S.),
Publisher:
Abstract: (CIT): Is it problematic if patients can identify themselves in a grand rounds presentation or a scientific publication? Should consent be required to present information about individual patients and, if so, should patients be able to block presentations they don't like? Medicine and research, from clinical rounds to grand rounds, from scientific conferences to scientific publications, rely on the presentation of individual patients. Yet, surprisingly, there are no consensus guidelines on how these issues should be handled.
Subjects: Access to Information--ethics
Confidentiality--ethics
Electronic Health Records--ethics
Ethics, Research
Privacy
Publication Types: Lectures
Webcasts
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Caption Text: Download Caption File
NLM Classification: WX 21
NLM ID: 101705343
CIT Live ID: 22113
Permanent link: https://videocast.nih.gov/launch.asp?23212