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Informed Consent for Pediatric Biobanking

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Air date: Tuesday, March 27, 2012, 1:00:00 PM
Time displayed is Eastern Time, Washington DC Local
Views: Total views: 409, (249 Live, 160 On-demand)
Category: Special
Runtime: 02:00:35
Description: Biospecimens Interest Group

This presentation will explore the considerable controversy in the research community about using stored pediatric biospecimens from grown donors, and specifically whether it is ethically appropriate to seek or waive consent for studies when pediatric donors reach the age of majority. Confusion about ethical and legal obligations and the complicated logistics of re-contacting pediatric donors and/or their families have plagued pediatric investigators despite the potential for advancing scientific knowledge, diagnostic capability, and therapeutic practice.

David Wendler, Ph.D.
Head, Unit on Vulnerable Populations, Department of Bioethics
NIH Clinical Center

Sara C. Hull, Ph.D.
Head, Unit on Ethics and Genetics / Director, Bioethics Core
NIH Clinical Center / National Human Genome Research Institute

Carol J. Weil, J.D.
Regulatory Affairs Advisor, Office of Biorepositories and Biospecimen Research
National Cancer Institute, NIH
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NLM Title: Informed consent for pediatric biobanking [electronic resource] / David Wendler, Sara C. Hull, and Carol J. Weil ; Biospecimens Interest Group.
Author: Wendler, David.
National Institutes of Health (U.S.). Biospecimen Interest Group.
Publisher:
Abstract: (CIT): This presentation will explore the considerable controversy in the research community about using stored pediatric biospecimens from grown donors, and specifically whether it is ethically appropriate to seek or waive consent for studies when pediatric donors reach the age of majority. Confusion about ethical and legal obligations and the complicated logistics of re-contacting pediatric donors and/or their families have plagued pediatric investigators despite the potential for advancing scientific knowledge, diagnostic capability, and therapeutic practice.
Subjects: Biological Specimen Banks--ethics
Child
Human Experimentation--ethics
Informed Consent--ethics
Publication Types: Lectures
Webcasts
Download: To download this event, select one of the available bitrates:
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Caption Text: Download Caption File
NLM Classification: W 20.55.H9
NLM ID: 101581500
CIT Live ID: 11021
Permanent link: https://videocast.nih.gov/launch.asp?17193

 

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