BEGIN:VCALENDAR VERSION:2.0 PRODID:VideoCast CALSCALE:GREGORIAN METHOD:PUBLISH BEGIN:VEVENT SUMMARY:Rare Diseases: The challenges presented by Biospecimens, Patient Registries, Electronic Heath Record and Bioethics DTSTART:20120531T170000Z DTEND:20120531T190000Z DTSTAMP:20120604T135900Z UID:Videocast--11244 LOCATION:http://videocast.nih.gov DESCRIPTION:Dr. Marni J. Falk\, Dr. Philip Resnik and Dr. Rachel Dvoskin \nPresentations include: Rare disease research\, patient registries\, and biospecimens: A translational scientist’s perspectives on mitochondrial disease Dr. Marni J. Falk. Assistant Professor of Pediatrics Division of Human Genetics The Children's Hospital of Philadelphia  “Unlocking the unstructured information in EHRs: the role of natural language processing technology in integrating patient clinical information” Dr. Philip Resnik\, Professor at the Department of Linguistics and Institute for Advanced Computer Studies\, University of Maryland College Park and  “Ethical issues and challenges surrounding research in rare diseases: informed consent\, privacy\, data sharing\, and return of results” Dr. Rachel Dvoskin Genetics Research Analyst\, Genetics and Public Policy Center Johns Hopkins Berman Institute of Bioethics \n \nFor more information\, visit \nhttp://biospecimens.ordr.info.nih.gov http://biospecimens.ordr.info.nih.gov\n X-ALT-DESC;FMTTYPE=text/html:\n\n\n

Author: Dr. Marni J. Falk\, Dr. Philip Resnik and Dr. Rachel Dvoskin

Description: Presentations include: Rare disease research\, patient registries\, and biospecimens: A translational scientist’s perspectives on mitochondrial disease Dr. Marni J. Falk. Assistant Professor of Pediatrics Division of Human Genetics The Children's Hospital of Philadelphia  “Unlocking the unstructured information in EHRs: the role of natural language processing technology in integrating patient clinical information” Dr. Philip Resnik\, Professor at the Department of Linguistics and Institute for Advanced Computer Studies\, University of Maryland College Park and  “Ethical issues and challenges surrounding research in rare diseases: informed consent\, privacy\, data sharing\, and return of results” Dr. Rachel Dvoskin Genetics Research Analyst\, Genetics and Public Policy Center Johns Hopkins Berman Institute of Bioethics

For more information\, visit
http://biospecimens.ordr.info.nih.gov

CIT Live ID: 11244

BEGIN:VALARM ACTION:DISPLAY DESCRIPTION:Videocast:Rare Diseases: The challenges presented by Biospecimens, Patient Registries, Electronic Heath Record and Bioethics TRIGGER:-PT3H END:VALARM END:VEVENT END:VCALENDAR