I'M LARRY TABAK, PRINCIPLE 

DEPUTY DIRECTOR AND I'M HERE 

TODAY BECAUSE DR. COLLINS IS IN 

LONDON OF ALL PLACES.

NOT LONDON ONTARIO,  BUT LONDON

IN THE UK.

HE DOES SEND HIS REGRETS BUT HE 

IS LOOKING FORWARD TO HEARING A 

SUMMARY OF WHAT HAS BEEN 

DISCUSSED TODAY.

SO I KNOW YOU'VE ALREADY BEGUN 

DISCUSSIONS ABOUT THE COPR 

ORIGINS AND VARIOUS WAYS THAT 

PEOPLE RECEIVE AND SHARE AND 

IMPORTANTLY ACT ON INFORMATION 

AND OVER TIME OBVIOUSLY ALL OF 

THOSE MODALITIES HAVE EVOLVED 

AND HAVE CHANGED.

SO INTERNET FOR CERTAIN HAS HAD 

A PROFOUND IMPACT ON OUR 

SOCIETY.

UM, I'M TOLD SOCIAL MEDIA DOES 

TOO ALTHOUGH I CONFESS THAT, UM,

I AM, UH, NOT, UM, UP-TO-DATE ON

ANY OF THAT.

UM, BUT CERTAINLY, UM, YOU KNOW,

WE ARE ALWAYS LOOKING REGARDLESS

OF WHAT THE TECHNOLOGY IS, WE'RE

ALWAYS LOOKING AT BETTER WAYS TO

BROADEN PUBLIC ENGAGEMENT, AND 

SO IT SEEMS OPPORTUNE TO PAUSE 

AND SAY, HOW CAN WE GOING 

FORWARD GATHER AND CONSIDER 

INPUT FROM THE PUBLIC IN THE 

BROADEST POSSIBLE WAY?

SO THIS MORNING I UNDERSTAND YOU

HEARD FROM A NUMBER OF FOLKS; 

JOHN CARSON FROM THE WHITE HOUSE

OFFICE OF PUBLIC ENGAGEMENT 

WHERE I HEAR THEY BRING IN HOW 

MANY PEOPLE ARE THEY?

150 EVERY DAY.

BOY, THAT WOULD BE QUITE A 

CHALLENGE.

UM, AND THEN, UM, JUSTIN HARMEN 

FROM THE GSA OFFICE.

I SAW DEBRA LAPIN AS SHE WAS 

DEPARTING AND THEN MICHAEL 

MENGETTO WHO ARE BOTH FORMER 

MEMBER OF COPR, AND THEN I GUESS

GREG ALLBRIGHT.

YOU'VE HEARD FROM A BROAD RANGE 

OF PEOPLE AND NO DOUBT THEY EACH

HAD THEIR OWN PERSPECTIVES.

3 GOING 
SO WHAT WE WANT TO DO NOW

FORWARD FOR THE REST OF THE 

MEETING IS TO FOCUS ONN HOW WE 

CAN ADAPT THE STRUCTURE AND MOST

IMPORTANTLY THE FUNCTION OF COPR

TO REFLECT SOME OF THESE CHANGES

IN COMMUNICATION STRATEGIES AND 

HOW THE PUBLIC EXPECTS TO 

ENGAGE.

UM, AND SO, UM, THIS WAY I THINK

WE CAN MOVE FORWARD WITH A COPR 

THAT HAS A MAXIMUM EFFECTIVENESS

THAT CARRIES OUT OR MEETS THE 

EXPECTATIONS OF THE IOM 

RECOMMENDATION WHICH WAS TO 

ENSURE TRANSPARENT IS I PUBLIC 

INPUT AND ENGAGEMENT.

WE ARE NOT GOING TO DO ANYTHING 

FINAL TODAY.

THIS IS JUST SORT OF 

BRAINSTORMING.

UM, THE IDEA WILL BE TO DEVELOP 

A BROAD RANGE OF SUGGESTIONS, 

NEXT STEPS.

IF AT ALL POSSIBLE, WE'D LIKE 

PRIORITIES FROM YOU BECAUSE WHAT

TYPICALLY HAPPENS IN THESE TYPES

OF SESSIONS IS YOU HAVE 137 

THINGS AND, OKAY, WHICH IS THE 

MOST IMPORTANT THEN IT GETS 

LOST.

WE'D RATHER HAVE FEWER IN A 

PRIORITY ORDER.

AS YOU THINK THROUGH THINGS, 

PLEASE, LET'S THINK ABOUT WHAT 

THE MOST IMPORTANT ONES ARE.

UM, OBVIOUSLY WE CONTINUE TO BE 

GRATEFUL FOR THE SERVICE OF THE 

COPR MEMBERS.

YOU HAVE EXERCISED EXTRAORDINARY

PATIENCE WITH US AS WE SORT OF 

WORK THROUGH THESE GROWING PAINS

AND REALLY, YOU KNOW, YOUR 

COMMITMENT TO IMPROVING THE 

AGENCY'S ABILITY TO ENGAGE WITH 

THE PUBLIC IS APPRECIATED 

ENORMOUSLY.

SO WE DO THANK YOU.

SO THE LIST OF QUESTIONS AT 

LEAST TO GET YOU ALL STARTED IS 

HERE ON THE SCREEN.

UM, HOW SHOULD NIH SEEK BROADER 

PUBLIC INPUT?

UM, WHAT IS THE ROLE FOR A COPR 

MEMBER?

UM, YOU HAVE HEARD OVER AND OVER

AN OVER AGAIN DURING YOUR TENURE

AS MEMBERS, YOU KNOW, LEAVE YOUR

SPECIFIC INTEREST AT THE DOOR.

UM, BEYOND THAT, YOU KNOW, WHAT 

SHOULD THE ROLE BE?

I'M GUESSING THE TERMINOLOGY IS 

AMPLIFIERS OF MESSAGES.

I'M LEARNING ALL THIS NEW LINGO.

YOU KNOW, HOW DO WE MEASURE 

COPR'S SUCCESS?

WHAT ARE THE BENCHMARKS, THE 

GOALS THAT YOU'D WANT TO PUT 

INTO PLACE FOR YOURSELVES AND 

FOR THOSE WHO COME, YOU KNOW, IN

THE FUTURE?

THE NEXT QUESTIONS ARE REALLY 

IMPORTANT ONE; HOW DO YOU 

BALANCE WHAT IS OBVIOUSLY THE 

SORT OF GOLD STANDARD OF 

FACE-TO-FACE MEETINGS WITH THIS 

NEW SOCIAL MEDIA STUFF, WHICH I 

FREELY ADMIT IT, I HAVE NO IDEA 

WHAT TWITDER TWITTER IS, I DON'T

USE FACEBOOK, YOU KNOW, SO OKAY,

BUT THE REST OF THE WORLD DOES.

I KNOW EVERYBODY'S LAUGHING AT 

ME.

YOU KNOW, ACTUALLY, I LIED.

I GO TO FACEBOOK FOR ONE REASON,

MY GRANDSON'S PICTURES ARE ON 

THERE BECAUSE MY MISERABLE SON 

AND DAUGHTER-IN-LAW DON'T SEND 

US PICTURES THEY PUT THEM ON 

FACEBOOK.

[LAUGHTER]

FINALLY, WHAT'S YOUR OPINION TO 

THIS TO WHAT THE NEXT STEPS FOR 

NIH AND COPR SHOULD BE.

WE COULD ADD TO THIS LIST IF YOU

WANT, BUT THIS IS JUST SORT OF A

STARTING POINT, AND I THINK, UH,

YOU KNOW, FROM THAT, I WILL GO 

JOIN YOU BACK AT THE TABLE IF 

THAT'S OKAY.

>> THAT'D BE GREAT.

THANK YOU VERY MUCH, LARRY.

AGAIN, WE'LL HAVE A CONVERSATION

STYLE, AND EMILY, YOU'LL BE ABLE

TO TYPE IDEAS UP ON THE BOARD.

SO WE CAN KEEP TRACK OF THEM AND

ERASE THEM AS YOU NEED TO IF YOU

CHANGE YOUR MIND ABOUT 

SOMETHING.

THANK YOU VERY MUCH.

>> OKAY.

>> AND REALLY, AS LARRY SAID, 

THESE CAN KICK OFF A 

CONVERSATION.

DON'T FEEL LIMITED TO THESE 

QUESTIONS, BUT I THINK, UH, SOME

OF IT WE'VE TALKED ABOUT ALREADY

THIS MORNING AND IT'S A WAY TO 

GET US GOING AND AT THE END OF 

THE DISCUSSION TO HAVE A LIST OF

MORE OR LESS A PRIORITY LIST OF 

SUGGESTIONS FOR NEXT STEPS.

>> SO SOMEBODY HAS TO START.

>> YEAH.

SOMEBODY HAS TO START.

LOOKS LIKE LYNN HAS HER HAND UP.

>> PERFECT.

>> I'LL JUST START WITH THE 

FIRST BULLET POINT THERE.

I THINK THIS MORNING WHICH WAS 

VERY HELPFUL HEARING FROM 

EXPERTS AND PEOPLE WITH 

DIFFERENT EXPERIENCES.

SO ON THE FIRST ONE, I THINK 

THERE WAS QUITE A FEW PLACES 

THAT WAS BROUGHT UP THAT, THAT 

QUESTION ITSELF IS PROBABLY TOO 

BROAD.

IT IS HOW SHOULD NIH SEEK 

BROADER PUBLIC INPUT ON... 

AND UNLESS THERE'S SOME 

SPECIFICITY SO THAT FILL-IN-THE 

BLANK.

SO YOU NEED TO KNOW WHAT THE 

ISSUE IS AND YOU NEED TO KNOW 

WHAT THE AUDIENCE IS BEFORE YOU 

CAN REALLY DEVELOP A MEANINGFUL 

STRATEGY.

I WOULD ALSO SAY THAT, UM, I'LL 

RAISE THE QUESTION -- AND NOW 

THIS IS RELATED TO WHAT IS THE 

ROLE OF COPR GOING FORWARD.

I THINK THAT AT LEAST THE WAY 

THAT I REMEMBER IT IS, IS THAT 

COPR HAS BEEN LOOKED AT WITH THE

COMMUNICATION POSSIBLY BOTH 

WAYS.

SO IT'S GETTING INPUT, ADVISING 

ON THAT, AND ALSO ADVISING ON 

PUSHING INFORMATION OUT.

>> RIGHT.

>> WHICH I THINK IS A DIFFERENT 

QUESTION, WHICH MIGHT USE, YOU 

KNOW, DIFFERENT STRATEGIES.

SO I THINK THAT'S PART OF THE 

QUESTION ON THE TABLE HERE IS; 

WHAT IS THE ROLE.

>> INFORMATION IN VERSUS 

INFORMATION OUT, AND THEY'RE NOT

MUTUALLY EXCLUSIVE BUT THEY ARE 

DIFFERENT.

>> EXACTLY.

AND IT GETS BACK AROUND TO THAT 

SPECIFICITY ISSUE BECAUSE IF 

WE'RE NOT CLEAR ABOUT THE WHAT 

THE MESSAGE AND THE AUDIENCE IS,

IT'S HARD TO BE, UM, USEFUL.

>> [LOW AUDIO].

>> I AGREE WITH WHAT YOU'VE 

SAID.

I THINK HOW SHOULD  NIH SEEK 

BROADER PUBLIC INPUT.

I THINK THE CONVERSATION THIS 

MORNING WAS MOST OF ALL SOCIAL 

MEDIA AND THEY OFFERED AN 

ARSENAL OF OPTIONS, INNOVATIVE 

COOL IDEAS AND I SEE COPR AS ONE

PIECE OF THAT.

SOCIAL MEDIA IS NOT GOING TO 

REPLACE SOCIAL MEDIA AND VICE 

VERSA.

WE HAVE MORE TOOLS NOW TO USE.

UM, BUT I GUESS THE QUESTION 

YOU'VE POSED IS REALLY NOW IN 

THIS NEW AGE OF SOCIAL MEDIA, 

HOW IS COPR THEN DIFFERENT 

AND -- 

>> HOW DOES COPR USE SOCIAL 

MEDIA?

>> HOW DOES COPR USE SOCIAL 

MEDIA, WHICH IS WE'VE NEVER USED

MEDIA.

WE'VE NEVER EVEN LIKE USED OUR 

WEB PRESENCE.

>> AND IT DOESN'T -- JUST TO BE 

CLEAR, IT DOESN'T HAVE TO BE 

EVEN COPR GOING OUT AS COPR.

>> RIGHT.

>> AND IT'S JUST HOW DOES NIH 

USE SOCIAL MEDIA TO ENGAGE THE 

PUBLIC, AND IT'S -- 

>> RIGHT.

SO THAT'S ONE QUESTION.

HOW DOES NIH USE SOCIAL MEDIA TO

GET TO THE PUBLIC AND THE OTHER 

QUESTION IS WHAT IS COPR DOING.

THERE'S A FUNDAMENTAL ISSUE OF 

WHAT COPR'S ROLE IS; TWO VERY 

DIFFERENT QUESTIONS IS WHAT I'M 

SAYING.

AND WHETHER IT'S INFORMATION IN,

LIKE JUST GIVING ADVICE VERSUS 

GIVING THREADING IT BACK OUT IS 

GOING TO, YOUR MEMBERSHIP MIGHT 

BE VERY DIFFERENT.

>> SO LET ME ASK YOU TO 

ELABORATE A LITTLE BIT ABOUT THE

PUSHING THE MESSAGE OUT BECAUSE 

I APPRECIATE INPUT IN IS IN SOME

SENSE MEMBER-SPECIFIC.

YOU CAN PROVIDE CERTAIN INPUT.

IF YOU HAVE A SUFFICIENT NUMBER 

OF PEOPLE, YOU EVENTUALLY GET A 

VERY BROAD RANGE OF INPUT AND 

THAT'S GREAT, BUT PUSHING 

INFORMATION OUT, IS THAT ALSO 

MEMBER-SPECIFIC OR IS THAT A 

MORE GENERIC POSSIBLE FUNCTIONAL

ROLE?

I MEAN I'M JUST ASKING, I DON'T 

KNOW THE ANSWER.

>> I'LL TRY TO GIVE AN EXAMPLE 

FOR THAT.

SO, UM, AS A COMMUNITY HEALTH 

CENTER DIRECTOR, I KNOW ENOUGH 

ABOUT NIH.

I HAD DONE SOME RESEARCH EARLIER

IN MY CAREER WHERE I WANT TO BE 

A GOOD CONSUMER OF RESEARCH 

RESULTS.

WELL, THAT'S FINE FOR ME BUT I 

HAVE 1,200 COLLEAGUES.

WE'RE IN EVERY STATE, EVERY 

TERRITORY, EIGHT THOUSAND SITES 

AND WE'RE GROWING AND I KNOW 

THERE'S AN INTEREST IN NIH IN 

CLOSING THE DISPARITY GAP THAT 

WE WANT DISCOVERY TO BE USED BY 

ALL AMERICANS NOT JUST SOME.

SO THERE'S A NATURAL PARTNERSHIP

THERE.

YOU GUYS HAVE BEEN PRODUCING 

INFORMATION THAT'S USEFUL TO US 

IN THE FIELD, BUT SOMETIMES WE 

DON'T KNOW ABOUT IT, AND 

SOMETIMES THERE ARE BARRIERS 

OTHER THAN JUST IGNORANCE WHILE 

WHY WE'RE NOT APPLYING IT.

>> OKAY.

>> SO WHAT I WOULD HOPE TO DO 

WITHIN MY CONSTITUENCY IS TRY TO

WORK WITH NIH TO SAY, HOW CAN 

YOU TAKE A LOOK AT WHAT OUR 

GOALS ARE IN THE FIELD, YOU 

KNOW, EIGHT THOUSAND SITES 

STRONG, 20 MILLION LOW-INCOME 

PEOPLE BEING SERVED, AND WHAT 

YOUR DISCOVERIES ARE AND 

MATCHING SOME OF THOSE UP.

SO I KNOW YOUR BACKGROUND WITH 

THE HOUSE, I'LL GIVE YOU A 

DENTAL EXAMPLE.

SO WE KNOW THAT PAR DAN TALL 

DISEASE F YOU HAVE IT, THEY SAID

IT'S LIKE THE SIXTH RISK FACTOR 

FOR DIABETES.

IF YOU HAVE PARDON TALL DISEASE 

UNTREATED, YOUR LIKELY HAVE 

DIFFICULTY CONTROLLING YOUR 

BLOOD SUGAR.

THERE SHOULDN'T BE A A HEALTH 

CENTER OUT THERE THAT IS NOT 

MAKING SURE ALL THEIR DIABETIC 

PASHLTSS ARE NOT GETTING HEALTH 

CARE AND YET THERE IS.

I SEE PUSHING INFORMATION OUT IS

TO SAY, UM, YOU KNOW, WE NEED TO

USE THESE DISCOVERIES THAT WE'RE

INVESTING IN AS A NATION AND WE 

NEED TO PUT IT TO WORK IN OUR 

CLIENTELE AND THAT'S ONE WAY I 

WOULD SEE COPR COLLABORATING.

WE ALL HAVE OUR OWN, YOU KNOW 

AND LET'S PUT THAT INFORMATION 

TO WORK AND LET'S FIND WAYS OF 

COLLABORATING BETTER ACROSS 

THESE ASSOCIATIONS AND TO GET 

THAT INFORMATION OUT IN USABLE 

FORM.

>> LET ME PUSH YOU A LITTLE 

FURTHER THOUGH.

SO I THINK THAT'S A VERY 

OUTSTANDING EXAMPLE.

GET A LITTLE BIT MORE INTO THE 

QUESTION WES FOR ME.

HERE'S THE INFORMATION.

YOU REVIEW IT, KNOW IT'S GERMANE

TO THE COMMUNITY HEALTH CENTERS 

AROUND THE NATIONS.

SO THEN WHAT HAPPENS?

>> WHAT I MIGHT RECOMMEND AS A 

MEMBER OF COPR IS THAT THE 

DIRECTOR OR DESIGNEE POTENTIALLY

WORK ACROSS AGENCY LINE TO HRSA 

AND TALK WITH THE DIRECTOR OF 

HRSA ABOUT YOU GUYS HAVE CREATED

THIS WONDERFUL NETWORK OF 

PRIMARY CARE DELIVERY OUT THERE,

YOU'VE EMBRACED DENTAL AND 

BEHAVIOR AS PRIMARY CARE, YOU'RE

PROVIDING GRANTS TO ALL THESE 

FOLKS THAT TOUCH 20 MILLION 

LIVES.

HERE'S SOME INFORMATION THAT 

WE'VE LEARNED THAT OUGHT TO HELP

YOU IMPROVE THE QUALITY OF YOUR 

SERVICES TO THOSE 20 MILLION 

AMERICANS.

SO WHAT WE MIGHT WANT YOU TO DO,

HRSA, IS CONSIDER HAVING THAT AS

A CRITERIA.

NOW IF IT'S A CRITERIA, ALL OF A

SUDDEN, UM, HOWEVER MANY 

DIABETICS THERE ARE IN 20 

MILLION ARE GETTING THAT CARE.

>> SO IN THIS FAIDZ, AGAIN I'M 

NOT DISAGREEING, U.S. JUST 

TRYING TO SUMMARIZE WHAT THE -- 

IN THIS CASE COPR MEMBER IS 

DRAWING TO THE ATTENTION OF NIH 

THE POTENTIAL ADDED VALUE THE 

INFORMATION TO A SPECIFIC GROUP 

AND RECOMMENDING AN APPROACH -- 

IN THIS CASE SPEAKING TO A 

SISTER AGENCY -- TO EFFECT THAT 

DISSEMINATION, RIGHT?

>> IS THAT THE KIND OF INPUT 

THAT DIRECTOR WOULD VALUE, FOR 

EXAMPLE.

>> [INDISCERNIBLE] BUT NOW I'M 

GOING TO KEEP PUSHING YOU 

BECAUSE YOU SAID DENTAL SO I 

FIGURE I'M ALLOWED TO DO THAT.

[LAUGHTER]

SO HOW DO YOU NOW INSERT A COPR 

MEMBER -- ONE OF YOU -- UM, INTO

A MORE ACTIVE ROLE OF DOING THEo[[ 

PUSH?

IS THAT FEASIBLE?

>> CERTAINLY.

I'M ON THE HEALTH POLICY 

COMMITTEE AT THE NATIONAL 

ASSOCIATION, I'M ON THE RESEARCH

COMMITTEE AND INTERNALLY WITHIN 

THE ASSOCIATION, WHICH IS 

ANOTHER WAY OF ORGANIZING HEALTH

CENTERS.

ONE WAY IS THROUGH THE 

GOVERNMENT GRANTS ANOTHER WAY TO

ORGANIZE IS OUR OWN ASSOCIATION,

WHICH AS WE HEARD THIS 

MORNING -- WHAT WAS THE TERM 

THEY USED AGAIN?

CIRCLE OF TRUST.

SO YOU TRUST YOUR ASSOCIATION.

SO THEN I WOULD BE SAYING I'D BE

LOBBYING WITHIN THAT ASSOCIATION

TO GET A PUSH FROM THE 

ASSOCIATION THAT WOULD MAKE IT 

RECEPTIVE TO A PRESENCE COMING 

FROM THE AGENCY.

>> AND LYNN, YOU HAVE A COMMENT?

>> RELATED TO THIS.

YEAH.

I AGREE WITH WHAT GREG IS SAYING

THAT I THINK THOUGH THAT THE 

POTENTIAL VALUE OF THE KIND OF 

FOLKS THAT HAVE SAT AROUND THIS 

TABLE IS THAT THEY ARE THESE 

CONDUITS TO THE PUBLICS.

I'M TALKING ABOUT THE PUSHING 

INFORMATION OUT, PUSHING 

FINDINGS OUT.

SO, YOU KNOW, YOU'VE HAD REALLY 

FANTASTIC PATIENT ADVOCATE 

GROUPS REPRESENTED, GREG'S 

TALKING ABOUT THE COMMUNITY 

HEALTH CENTER.d@Cu

OF COURSE MY OPTIC WORLD IS ME 

DICK SOCIETIES IN PEDIATRICS, 

BUT YOU HAVE PEOPLE -- AND I 

THINK THIS HAS BEEN TRUE FOR THE

WHOLE HISTORY -- WHO ARE EXPERTS

AT UNDERSTANDING THOSE WORLDS.

SO AS OPPOSED TO IT BEING 

NECESSARILY THE INDIVIDUAL, 

MAYBE IT'S ABOUT HELP IN SETTING

UP SYSTEMS AND PROCESSES THAT 

WOULD GO BEYOND ANY INDIVIDUAL.

I THINK WHAT I WOULD HAVE TO SAY

ABOUT PEDIATRICS PROBABLY 

APPLIES TO A LOT OF MEDICAL 

SOCIETIES IN TERMS OF 

MECHANISMS; HOW THINGS WORK.

UM, SO IT'S A WAY OF LEARNING 

FROM THAT AND AMPLIFYING.

I WILL GIVE -- YOU KNOW, IT'S 

ONE OF OUR FAVORITE EXAMPLES 

BECAUSE IT'S BEEN SO 

TREMENDOUSLY SUCCESSFUL -- WAS 

THE BACK TO SLEEP CAMPAIGN.

RIGHT.

WE'VE CUT SIDS DEATHS IN HALF.

THIS IS JUST THE MOST WONDERFUL 

PUBLIC HEALTH STORY, AND THAT 

ACTUALLY WAS THIS HISTORY OF 

THE -- IT WAS A GROUP.

IT WAS THE ACADEMY, IT WAS 

NICHD, AND A COMPANY ACTUALLY 

PAMPERS, IT WAS ON THE DIAPERS.

SO IT WAS A WONDERFUL STORY OF 

WORKING TOGETHER FROM THE 

BEGINNING, TAKING THE EVIDENCE 

AND THEN WORKING OUT FROM THAT 

IN TERMS OF A COMMUNICATION 

STRATEGY.

NOW I REALIZE THERE'S REASONS 

THAT MAKE THAT ONE ESPECIALLY 

POWERFUL.

IT WAS SUCH A CLEAR SPECIFIC 

MESSAGE, BUT I THINK THERE'S 

LESSONS FROM THAT THAT CAN APPLY

TO OTHER THINGS.

>> OKAY.

AND AGAIN, NONE OF THESE ARE 

MUTUALLY EXCLUSIVE.

THEY'RE ADDITIVE.

>> DONNA HAS COMMENTED BEFORE ON

THIS WHOLE ISSUE.

DONNA, CAN YOU COMMENT ON IT 

PLEASE?

>> FROM WHAT WE WERE TALKING 

ABOUT BEFORE, I THINK THAT THERE

IS SO MUCH SOCIAL MEDIA, SO MUCH

WAYS THAT YOU CAN GET [LOW 

AUDIO] THAT I WORRY, I WANT TO 

BE VALUABLE TO YOU AND WANT TO 

LOOK FOR HOW I'M MOST VALUABLE, 

AND SO WHEN I THINK ABOUT YOUR 

BIGGEST NEED, PERSONALLY, HAVING

A LOT OF EXPERIENCE BEING AT NIH

IS THAT THE NIH IS TERRIBLE AT 

PLAYING THEIR OWN TRUMPET.

THEY JUST AREN'T REALLY GREAT, 

THEY'RE HUMBLED RESEARCHERS AND 

THEY'RE NOT GREAT AT GETTING THE

MESSAGE OUT.

SO MY [LOW AUDIO] DESIRE TO HELP

IS TRYING TO GET THE MESSAGE 

OUT, AND YOU KNOW, I, UM, [LOW 

AUDIO] SUCH A WEALTH OF STUFF 

GOING ON AT THE NIH AND I HAVE 

THIS CIRCLE OF TRUST AND I HAVE 

THESE PEOPLE THAT MIGHT SEND THE

MESSAGE OUT AND IT'S GOING BE A 

PEBBLE IN A POND AND IT WILL GO 

OUT FURTHER.

I LIVE IN A WORLD WHERE PEOPLE 

DON'T TRUST RESEARCH LET ALONE 

NIH.

LIKE RESEARCH ISN'TEN A FRIENDLY

WORD IN SOME CULTURES.

WE HAVE A LOT OF WORK TO DO WITH

MAKING THE NIH PALATABLE NOT 

JUST IN A SCIENTIFIC 

BREAKTHROUGH FROM SOME ENZYME OR

SOMETHING, BUT RESEARCH IN 

GENERAL.

MAKING IT USER FRIENDLY AND 

HUGGABLE AND WARM, WHICH I KNOW 

THE NIH IS.

I KNOW THAT PART OF NIH, AND I 

REALLY AM STRUGGLING TO FIGURE 

OUT HOW WE CAN BEST BE MOST 

USABLE TO MAKE IT SEEM LIKE THE 

WORLD'S FRIENDLIEST PLACE.

YOU KNOW.

SO, YOU KNOW, I'M THINKING 

STUPID THINGS LIKE I'M JUST 

THINKING IT WOULD BE GREAT IF 

THERE WAS A WAY FOR THE SOCIAL 

MEDIA TO ACTUALLY BE ABLE TO 

[LOW AUDIO] [INDISCERNIBLE].

WOULDN'T THAT BE COOL IF 

SOMEBODY COULD SEND AN E-MAIL TO

ME AS -- I'M SUPPOSED TO BE 

REPRESENTING THE PUBLIC TO THE 

NIH.

DOES THE PUBLIC HAVE ANY 

QUESTIONS OR SOMETHING THAT 

THEY'D LIKE TO ASK OR SOMETHING 

LIKE THAT?

AND SO MAKING US AVAILABLE TO 

THE PUBLIC; DOES THE PUBLIC KNOW

THAT THE PUBLIC IS BEING 

REPRESENTED?

>> THAT'S INTERESTING.

SO IN OTHER WORDS, SORT OF 

BEACONS -- HERE WE ARE, DO YOU 

HAVE ANY QUESTIONS.

>> I'M SUPPOSED TO BE 

REPRESENTING YOU, DO YOU KNOW 

I'M HERE NUMBER ONE AND DO YOU 

HAVE ANYTHING YOU WANT ME TO 

TALK TO THEM ABOUT OR DO YOU 

HAVE ANY QUESTIONS ABOUT WHAT 

THE NIH IS, ABOUT WHAT I'M 

REPRESENTING.

START THERE.

>> THAT'S INTERESTING.

>> JUST BUILDING ON THAT, WHAT 

YOU JUST SAID, DONNA, IN THE 

PRESENTATION FROM THE MAN FROM 

GSA, HE TALKED ABOUT COPR 

CONSERVE ADS.

WE COULD MONITOR SOME OF THE 

PUBLIC FEEDBACK THAT COMES IN TO

SORT OF SHIFT THROUGH AND TRY TO

STILL A LITTLE DIFFERENT TAKE ON

WHAT YOU WERE SUGGESTING.

>> THAT'S MY IDEA WAS THAT THE 

MONITORING OR POST TAKING OR 

GETTING A SENSE OF WHAT'S GOING 

ON THAT WE MAY NOT OTHERWISE 

KNOW.

WHICH WOULD BE THE FILTER OF IT.

>> I GUESS THE ISSUE FOR ME WITH

THE MONITORING IS, IS, AGAIN, 

WE'RE JUST A FEW NUMBER OF 

PEOPLE WITH ONLY SO MUCH TIME.

YOU GUYS HAVE LOTS OF FOLKS.

SO THE VALUE OF THE MONITORING 

FROM IF THERE IS A VALUE TO THE 

MONITORING, IT WOULD BE THAT YOU

WOULD HAVE PEOPLE FROM OUR 

DIFFERENT WALKS OF LIFE WHO ARE 

OUTSIDE THE ENGINE THAT IS HERE 

AND THAT OUR PERSPECTIVE ON THAT

MIGHT BE A DIFFERENT PERSPECTIVE

THAN YOUR INTERNAL FOLKS LOOKING

AT THE SAME STUFF, AND IF THAT'S

TRUE, THEN THAT'S WHERE THE 

VALUE ADDED COMES IN.

>> THERE IS ABSOLUTE

LY NO QUESTIONS THERE IS VALUE 

FRA FROM GETTING THAT [LOW 

AUDIO].

WHEN YOU LIVE HERE, YOU KNOW, 

YOU JUST LOOK AT THINGS 

DIFFERENTLY.

IT'S NOT THAT IT'S BAD OR 

WORSE -- YOU KNOW, BETTER OR 

WORSE, BUT IT IS DIFFERENT.

>> I WOULD JUST LIKE TO ADD 

THINKING ABOUT ALL THE COMMENTS 

BEING MADE THE ISSUE OF HEALTH 

LITERACY, WORKING WITH TRAVEL 

COMMUNITY LIKE DONNA, I WORK 

WITH A LOT OF PEOPLE THAT DON'T 

TRUST RESEARCH AT ALL BECAUSE OF

PAST HISTORY, AND SO, UH, ONE 

EDUCATING THEM ABOUT WHAT IS 

NIH.

I KNOW I THINK IT WAS OUR LAST 

MEETING WE TALKED ABOUT HOW DO 

WE REACH OUT TO THE PUBLIC 

EITHER THROUGH FORMAL 

PRESENTATIONS; DO WE HAVE A 

POWER POINT THAT COPR MEMBERS 

COULD GIVE TO A COMMUNITY AND 

THEN GATHERING FEEDBACK AND 

BRINGING IT HERE TO GIVE A 

PRESENTATION HERE.

HAVING THAT KIND OF AN IDEA AND 

LOOKING AT HEALTH LITERACY NOT 

ONLY BRINGING THE INFORMATION TO

ALASKA BUT IN A WAY WHERE I'M 

WORKING WITH AN ELDER WITH VERY 

LIMITED E

LIMITED ENGLISH, IS THIS VERY 

SIMPLE?

>> I JUST WANT TO REALLY SAY HOR

RA TO THAT BECAUSE I WAS IN 

COMMUNITIES, YOU KNOW, AND I WAS

JUST LEARNING ABOUT WHAT THEIR 

BIGGEST CONCERN IS AND THEN 

WHERE DO I BRING THAT?

I'M HERE, I'M A COPR MEMBER, DID

MY JOB, WENT AND GOT MY 

COMMUNITIES, I ASKED THEM THEIR 

BIGGEST THING IS PROVIDER 

PREVAILS ALL THEIR MEDICATIONS 

ARE BEING LOST, THEY CAN'T GET 

THEM.

SO I'M HERE, YOU KNOW, AND I, 

UH, WANT TO BE ABLE TO SAY WHAT 

THE PEOPLE WANT AND WHAT THE 

ISSUE IS.

>> YOU KNOW, AS AN ASIDE -- 

>> JORDAN JUST ASKED ME IF I'D 

ASK EVERYONE TO GET CLOSER TO 

THE MICROPHONES.

>> OH, WELL N THAT CASE.

>> SO, FOLKS.

>> AS AN ASIDE, I SIT ON 

SECRETARY'S TRIBAL ADVISORY 

COMMITTEE AND IT MEETS, I THINK,

QUARTERLY, AND REPRESENTATIVES 

OF THE DIFFERENT NATIONS COME TO

WASHINGTON, SIT AROUND A TABLE A

LITTLE LARGER THAN THIS ONE 

BECAUSE THERE ARE MANY OF THEM, 

AND THEY HAVE A CONVERSATION 

WITH THE SECRETARY AND VARIOUS 

DEPARTMENTAL OFFICIALS, AND I'M 

THE ONE WHO REPRESENTS NIH, AND 

FROM AN NIH PERSPECTIVE, I HAVE 

TO SAY, SADLY, WE ALMOST NEVER 

TALK ABOUT NIH BECAUSE 

OVERWHELMINGLY AND 

UNDERSTANDABLY, THEIR CONCERNS 

RELATE TO SURFACES, YOU KNOW, 

AND -- SERVICES, YOU KNOW, AND I

GET IT, BUT I SO MUCH WOULD LIKE

TO GET THE CONVERSATION ABOUT 

GETTING YOUNG PEOPLE FROM INDIAN

COUNTRY INTO BIOMEDICAL RESEARCH

AND GETTING THE ISSUES RELATED 

TO HEALTH LITERACY AND 

SCIENTIFIC LITERACY INVOLVED.

THERE ARE ALL THESE THINGS I 

WANT TO TALK ABOUT AND I SORT 

OF -- NOT THAT I'M BASHFUL -- 

BUT I JUST SORT OF SIT THERE AND

NO ONE CARES THAT I'M THERE.

[LAUGHTER]

IT'S BECAUSE IT'S OVERWHELMINGLY

CONCERNED ABOUT SERVICE.

SO YOU'VE GOT TO HAVE THE RIGHT 

VENUE.

SO THE REASON I'M RAISING ALL OF

THIS IS THE RIGHT VENUE IS WHEN 

YOU'RE IN THE VILLAGE, PERHAPS, 

OR WHEN YOU'RE WITH THE GROUP 

AND SO FORTH, AND THAT'S 

PORTABLE TO ANY SET OF ISSUES, 

BUT THIS IN PARTICULAR WHERE YOU

HAVE COMMUNITIES WHERE SERVICE 

IS SO DOMINANT IN TERMS OF 

CONCERN AND [LOW AUDIO].

SO, YEAH, MAYBE TARGETED 

OUTREACH WHERE YOU HAVE PEOPLE'S

ATTENTION AND 'CUZ THE VENUES WE

OFTEN HAVE AT OUR DISPOSAL, IT 

MAY NOT BE OPTIMAL.

>> SO JUST TO ENCOURAGE TO YOU 

LOOK AT THE QUESTIONS.

IT DOESN'T HAVE TO BE IN ORDER 

EITHER.

SO IF YOU SEE OTHER QUESTIONS 

YOU WANT TO ADDRESS.

>> YOU KNOW, WHAT WOULD BE VERY 

INTERESTING FOR ME THAT PEOPLE 

WOULD COMMENT ON FACE-TO-FACE 

VERSUS OTHER APPROACHES BECAUSE 

AS I'M A SELF-CONFESSED 

[INDISCERNIBLE] I ALREADY SAID 

THAT, BUT YOU ARE ALL PROBABLY 

DOING THIS OTHER STUFF SO I'M 

INTERESTED IN WHAT YOU THINK 

ABOUT IT.

>> I WILL JUST SAY I'M WITH YOU.

[LAUGHTER]

AND I'D LIKE TO COMMENT ABOUT 

GOLD STANDARD.

[LAUGHTER]

AND WE HEARD THAT ALSO FROM THE 

WHITE HOUSE.

>> ACTUALLY, YOU HEARD IT FROM 

EVERYONE INCLUDING GREG 

ALLBRIGHT.

HE ASKED OF EVERYONE WHO'S ON 

FACEBOOK AND TWITTER AND A 

NUMBER OF US RAISED OUR HANDS.

HE ASKED WHO'S VERY ACTIVE IN 

THE AREA AND IT'S A SMALLER 

PERCENTAGE, AND HIS POINT WAS 

THAT EVERYBODY'S TALKING AS IF 

EVERYBODY'S TOTALLY ENGAGED IN 

SOCIAL MEDIA AND THE REALITY IS,

YOU MAY BE TO CERTAIN DEGREES OR

NOT.

SO, NOT TO LOOK AT IT AS A 

PANACEA.

>> I MIGHT ALSO SAY THAT KIND OF

KEEPING IN THE EYES AND EARS, 

SAYING WHERE ARE YOUR EYES AND 

EARS IN THE COMMUNITY?

PART OF THAT IS THAT SINCE I'VE 

JOINED THIS THIS AND I'VE GOT TO

SEE SOME WHAT HAVE OF WHAT DONNA

HAS SEEN, THE COMMITMENT AND THE

UNIFIED VISION AND THE GREAT 

LOGO AND SAYING AND SO FORTH, I 

BECOME KIND OF AN AMBASSADOR IF 

YOU SAY, SO I'M LOOKING AT MY 

NORMAL DAY-TO-DAY ACTIVITIES AND

THEY'RE A LITTLE DIFFERENTLY AND

I'M THINKING ABOUT NIH.

THE EXAMPLE I GIVE YOU THAT I'VE

BEEN ON A LITTLE BIT OF A TEAR 

ON IS THAT IF I WERE PROVIDING 

FOOD, IF IT WAS A GROUP THAT 

PROVIDED ALL THIS FREE FOOD TO 

AN AGENCY AND THEN THAT AGENCY 

WAS GOING OUT IN THE COMMUNITIES

AND HANDING OUT THAT FREE FOOD 

TO ALL THE COMMUNITIES AND 

EVERYBODY, BOY, I REALLY LOVE 

THAT AGENCY AND THE AGENCY NEVER

SAID WHO GAVE THEM THE FOOD, 

THERE'S A PROBLEM WITH THAT, AND

THAT'S WHAT I SEE.

AND SO I COME BACK HERE AND I 

SAY, I URGE YOU THAT YOUR 

GRANTEES SHOULD TAKE UP THE FLAG

AND THEY SHOULD BE OUT THERE AND

THAT'S A NATURAL THING FOR THEM 

TO DO, RALLY AROUND, LET'S 

CIRCUMSTANCE IT WILL WAGONS AND 

WE CAN ALL GO IF THAT HAPPENS.

>> WELL, I KNOW IT WAS A FETE 

MORE, BUT WE DON'T DO FOOD 

ANYMORE AS YOU KNOW.

[LAUGHTER]

METAPHOR.

>> DO WATER.

>> LET THE RECORD SHOW -- I 

BROUGHT MY OWN.

[LAUGHTER]

CERTAINLY I TAKE YOUR POINT.

THIS IS ONE OF THE THINGS THAT 

DRIVES ME CRAZY AND KEEPS JOHN 

UP AT NIGHT, I'M SURE, IS THIS 

LACK OF WILLINGNESS TO SHARE IN 

THE GLORY, IF YOU WILL.

THE RESEARCH WAS DONE AT THE 

UNIVERSITY OF X, AND OUR GREAT 

INVESTIGATORS DID IT BECAUSE WE 

HAVE THIS WONDERFUL RESEARCH 

FACILITY IN THE PROUD STATE OF 

Y, AND OH, THE MONEY... AND WE 

ARE WONDERFUL.

YOU KNOW.

[LAUGHTER]

>> [LOW AUDIO].

>> I'M SORRY, WHAT?

>> NO, I WAS JUST LAUGHING.

>> IN FACT I'VE SAID THIS AND I 

MAY HAVE SAID THIS TO THIS 

GROUP.

I HAD A CONVERSATION A FEW YEARS

AGO WITH A VERY, VERY SENIOR 

MEMBER OF CONGRESS.

I WON'T EMBARRASS HIM BY NAMING 

HIM.

YOU'D KNOW WHO IT WAS.

IN ALL AERNSNESS HE SAID I DON'T

KNOW WHY WE NEED NIH ANYMORE 

BECAUSE WE HAVE ALL THIS 

RESEARCH GOING ON IN MY 

DISTRICT.

I ABOUT FELL OFF MY CHAIR 

BECAUSE THIS WAS SOMEBODY WHO 

ABSOLUTELY SHOULD KNOW BETTER 

AND DID NOT.

THAT PROBLEM IS REAL AND WITHIN 

THAT WE HAVEN'T OVERCOME YET.

>> HELPS IF YOU WANT TO TALK A 

LITTLE BIT ABOUT WHAT JOHN 

CARSON SAID WITH HIS EXPERIENCE 

WITH THE WHITE HOUSE OFFICE OF 

PB LICK ENGAGEMENT AND THE ROLE 

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IMSO'M ENCOURAGING YOU ALL 

TO TALK.

>> HE WAS JUST MENTIONING THAT 

DOING SOCIAL MEDIA IS CERTAINLY 

WHERE IT'S AT AND STUFF, BUT HE 

ACTUALLY FELT THAT HE GOT MORE 

OUT OF ONCE HE HAS ENGAGED 

PEOPLE IN SOCIAL MEDIA TO INVITE

THEM BACK TO THE WHITE HOUSE FOR

A FACE-TO-FACE, AND IT WAS THE 

FACE-TO-FACE MEETING THAT 

ACTUALLY CONGEALED, THAT MADE IT

ALL MORE PALPABLE.

I THINK HE WAS AT THAT 

DISCUSSION IF I REMEMBER 

CORRECTLY CAME UP WHEN WE WERE 

ALSO TALKING ABOUT HOW SOCIAL 

MEDIA CAN BE DIFFICULT AND 

PROBLEMATIC SOMETIMES, CERTAINLY

IN PEDIATRICS WHERE PEOPLE WORRY

ABOUT 

ABOUT VACCINES AND HE WAS SAYING

THERE'S A GREAT DEAL OF BENEFIT 

TO BRING THE PEOPLE TO THE 

CAMPUS, LET'S SAY, TO MEET THE 

INVESTIGATORS, TO MEET THE 

RESEARCHERS AND THAT'S WHEN THEY

GET INTO THIS CIRCLE OF TRUST.

DID DO THAT WELL?

>> YEAH.

THANK YOU.

>> I WAS NOT AWARE OF THE TERM 

CIRCLE OF TRUST.

>> IT WAS A MEET THE PARENTS 

TERM.

[LAUGHTER]

>> I UNDERSTAND WHAT THE 

CONCEPT.

>> RIGHT.

>> AND I WOULD ADD TO WHAT HE 

ALSO SAID WERE THEY STRUCTURED 

AS, YOU KNOW, YOU TAKE SOME OF 

THE TRADITIONAL, LIKE, LEAD 

AGENCY, SO ROTARY, RIGHT, AND SO

THAT THEY BECOME PARTNERS IN 

PLANNING THE ACTIVITY BUT THEN 

THEY HAVE FOUND IT EXTREMELY 

USEFUL THAT GROUPS LIKE THAT ARE

THE NEXUS TO MORE LOCAL GROUPS, 

RIGHT.

SO THEY'RE THE ONES THAT CAN 

BRING IN A REPRESENTATIVE FROM 

EVERY STATE SO THAT IT'S A WAY 

OF WHEN YOU'RE IN PARTNERSHIP 

AND THEY HAVE OWNERSHIP, YOU CAN

REALLY GET DOWN TO LOWER LEVELS 

BY WORKING WITH THEM IN A WAY 

YOU COULDN'T ON YOUR OWN.

>> NO DOUBT THERE'S GREAT VALUE 

IN INCREASING THE GRANULARITY OF

THE OUTREACH.

I MEAN, IN MY FORMER LIFE, I DID

A FAIR NUMBER OF THESE TYPES OF 

TALKS, YOU KNOW, COMMUNITY 

TALKS, ROTARY TYPES OF TALKS AND

SO FORTH.

UM, AND IT'S ALWAYS AMAZING.

YOU LEARN EACH TIME YOU LEARN 

SOMETHING YOU NEVER WOULD HAVE 

THOUGHT YOU WERE GOING TO LEARN 

IN THAT WAY.

YOU KNOW, JUST COMES OUT OF 

NOWHERE.

SO I'VE NEVER HAD THAT 

EXPERIENCE WHERE I WENT AND 

SAID, OH, GEE, WHAT A WASTE OF 

TIME.

YOU ALWAYS BRING BACK ONE 

SEMINAL IDEA.

I BEEN TO SOME PRETTY 

INTERESTING PLACES.

MY FORMER LIFE -- I DON'T TRAVEL

MUCH NOW.

>> ONE THING JOHN CARSON SAID 

TOO IS THAT HE USED AN INDUSTRY 

EXAMPLE WHICH I THOUGHT WAS 

INTERESTING.

ONE OF THE WEB SITES, I FORGET 

WHICH ONE, BUT THEY GO THEY WORK

WITH A SOCIAL MEDIA SITE BUT 

THEN THEY ACTUALLY MCDONALD'S 

INVITES FAMILIES OR PARENTS OUT 

TO BROOK, ILLINOIS, AND I WAS 

THINKING, YOU HAVE THE NIH -- 

YEAH, TO PEEK BEHIND THE CURTAIN

AND IT WAS THE SAME IDEA HERE.

PEOPLE COULD BE INVITED TO NIH.

WE EXPERIENCE THAT ALL THE TIME 

ANY TIME WE HAVE A MEMBER OF 

CONGRESS OR VIP COME OUT, THEY 

CAN'T BELIEVE, AND THIS IS JUST 

A FRACTION OF WHAT THEY'RE 

SUPPORTING, BUT AT LEAST IT 

BRINGS UP THE OTHER POINT JOHN 

CARSON BROUGHT UP WAS THAT YOU 

CAN TALK ON THE MACROLEVEL ALL 

YOU WANT.

YOU HAVE TO GET INTO A SPECIFIC 

STORY OF WHAT MADE THE 

DIFFERENCE, AND THAT'S WHAT WE 

ASPIRE TO DO WHEN WE TELL THE 

NIH STORY, BUT I THINK THAT'S 

SOMETHING THAT WE NEED TO DO 

MORE AND MORE.

>> UM, AND JUST TO FINISH JOHN, 

I LOVED WHEN HE WAS TALKING 

ABOUT -- IT'S SOMETHING I'LL 

CONSIDER ALL THE TIME -- IS THAT

EVERY OBSERVER OR HERE MAYBE 

EVERY VISITOR BECOMES A LOCAL 

REPORTER.

EVERYBODY'S TWEETING EVERYTHING 

AND EVERYBODY'S TAKING PICTURES 

OF EVERYTHING AND SENDING THEM 

ALL OVER THE PLACE.

EVERYBODY BECOMES A LOCAL 

REPORTER.

>> LYNN AND I WERE TALKING ABOUT

THIS EARLIER.

WHEN YOU THINK ABOUT IF WE'RE 

KIND OF EYES AND EARS OR AN 

AMBASSADOR FROM THE PUBLIC'S 

CHEWVIEW WHAT WE SEE OUT THERE, 

ONE OF THE THINGS THAT DOES 

GREAT DISSERVICE TO SCIENCE IS 

WELL WOMEN SHOULD GET MAMMOGRAMS

AFTER 50, NO, 40, NO, 50.

THEN THE PUBLIC, YOU KNOW 

DOESN'T SEE THAT.

SO WE WERE TALKING ABOUT TWO 

EXAMPLES.

ONE THE FLORIDATION EXAMPLE AND 

THERE'S A LOT -- IF I CAN USE 

THAT TERM.

THE OTHER ONE LYNN BROUGHT UP 

WAS IMMUNIZATIONS AND AUTISM.

NOW, IF YOU THINK ABOUT -- THE 

QUESTIONS WHAT I WOULD AM TRYING

TO BRING INPUT TO YOU, WHAT I 

WOULD SAY IS THINK ABOUT CDC'S 

ROLE IN THE FLORIDATION ISSUE.&6

-- CDC IS THERE TO HELP ANY 

POSSIBLE WAY AND THEY'RE 

ENGAGED.

WE DON'T REALLY SEE NIH ENGAGED 

IN THOSE KINDS OF BATTLES IN THE

SAME WAY, AND SO, YOU KNOW, CDC 

IS MAYBE WELL KNOWN OUT THERE 

BECAUSE TIMING IS EVERYTHING, SO

WHEN PEOPLE ARE PASSIONATE ABOUT

AN ISSUE, YOU GOT A CHANCE TO 

GET KNOWN, IT'S AN OPPORTUNITY.

CDC TAKES THOSE OPPORTUNITIES 

MORE OFTEN THAN I THINK NIH 

WOULD.

>> WELL -- 

>> THEY'RE STRUCTURED 

DIFFERENTLY, YES, BUT TO ME, 

THIS IS AN OPPORTUNITY.

>> SEE, IN FAIRNESS, I MEAN I 

DON'T DISAGREE WITH WHAT YOU 

JUST SAID, IT'S VERY ACCURATE, 

BUT IT'S NOT OUR MISSION.

SEE, CDC'S MISSION IS TO REACH 

OUT TO THE PUBLIC HEALTH 

OUTREACH.

WHAT WE DO IS WE SUPPORT THE 

RESEARCH THAT INFORMS THE PUBLIC

HEALTH APPROACH.

NOW, AS AN ASIDE, A LITTLE 

INSIDE BASEBALL TALK, I DON'T 

KNOW IF IT'S STILL TRUE, BUT FOR

YEARS THE DENTAL UNIT AT CDC WAS

SUPPORTED [INDISCERNIBLE] LAUGH 

BUT THAT'S JUST INSIDE BASEBALL 

TALK.

CDC IS CHARGED WITH THAT KIND OF

RESPONSIBILITY.

DO WE DO THAT OCCASIONALLY?

YES, WHEN THERE ARE CRISES.

SO FOR EXAMPLE, RELATED TO THE 

BIRD FLU, UM, YOU KNOW DR.

DR. FOUCHI SERVED AS A 

SPOKESPERSON, ONE OF SEVERAL BUT

CERTAINLY ONE OF THE PREEMINENT 

SPOKES PERSONS.

SO THERE ARE EXAMPLES OF THAT, 

BUT IT'S AN INTERESTING POINT 

BECAUSE WHEN DO WE CHOOSE TO 

STEP OUT AND WHEN DO WE CHOOSE 

TO STAND BEHIND OUR MISSION?

YOU KNOW, SO IT'S AN 

INTERESTING -- 

>> ANOTHER ONE THAT INVOLVES 

DENTAL.

>> CAN'T BELIEVE IT, DENTAL?

>> THE AMERICAN HEART 

ASSOCIATION.

>> YES.

>> JUST CAME OUT AS A RESULT OF 

A RESAENT PUBLICATION AND 

CIRCULATION, YOU'RE FAMILIAR?

>> YEAH, I DID THE WORK!

>> SO NIH MAYBE SHOULD STEP OUT 

ON THIS ONE BECAUSE THE WAY THEY

CAME AT THAT MADE AVERAGE PEOPLE

AND EVEN CLINICIANS THINK, OH, 

ALL THAT STUFF ABOUT 

CONNECT,TIVETY, GONE.

YET THERE WERE A COUPLE OF 

PEOPLE WHO FELT THEY HAD A WRITE

A DISCLAIMER ON SOME OF THIS AND

SAY -- BASICALLY HOW DO WE -- 

I'M TRYING TO CONVINCE OUR 

PHYSICIANS THAT DENTAL AND 

MEDICAL SHOULD BE INTEGRATED 

BECAUSE ALL THESE GOOD REASONS 

AND THEN THE AMERICAN HEART 

ASSOCIATION SAYS IT SHOULDN'T 

BE.

LET ME HELP YOU READ IT.

>> THE GENERAL PRINCIPLE YOU'RE 

RAISING IS A GOOD ONE.

WHEN DOES NIH MAKE THE DECISION 

TO STEP OUT VERSUS NOT.

>> YOU COULD PERHAPS IT WASN'T A

CRISIS OR IS A CRISIS IN A WAY; 

THE OBESITY IN AMERICA AND THE 

HBO SERIES.

YOU COULD ARGUE THAT, WELL, WE 

COULD TELL THE STORY WITHOUT 

NIH.

WELL NIH FUNDS THE RESEARCH THAT

INFORMS ALL THE PUBLIC HEALTH 

PRACTICES AND CLINICAL 

APPLICATIONS, SO WE ACTUALLY 

HAVE AN EXTREMELY IMPORTANT ROLE

IN IT, AND SO WE CERTAINLY WERE 

A MAIN ONE OF THE MAIN PLAYERS 

IN IT, SO IT'S A PUBLIC HEALTH 

ISSUE, BUT WE WERE BRINGING THE 

SCIENCE BEHIND THE HEALTH OR THE

SCIENCE THAT WILL CONTRIBUTE TO 

THE HEALTH, AND WE DO THAT IN 

OTHER WAYS.

ALZHEIMER'S EARLIER, LAST MONTH.

>> BUT I GUESS MY POINT IS, IF 

YOU -- AND THIS IS GETTING US 

BACK TO SOME OF OUR TASKS.

IF YOU WANT TO SELECT SOME 

PEOPLE AROUND THE COMMUNITIES 

AND YOU WANT THEM TO COME UP AND

GIVE YOU OTHER PERSPECTIVES, ONE

OF THOSE AT LEAST FROM THIS 

MEMBER IS, YOU DO IT SOMETIMES, 

YOU DON'T DO IT A LOT OF OTHER 

TIMES, YOU OUGHT TO BE 

BROADENING IT BECAUSE IT'S GOOD 

FOR SCIENCE.

>> FAIR POINT.

FAIR FEEDBACK.

LET ME ASK ANOTHER KIND OF 

QUESTION.

SO MAYBE YOU ARE ALL PATIENT 

ADVOCATES [LOW AUDIO] YOU'RE AN 

ADVOCATE PATIENT AS ARE YOU, 

MAYBE SOME OTHERS ARE TOO.

WE ASK YOU TO DO THIS VERY 

DIFFICULT THING.

WE ASK YOU IF YOU'RE PASSIONATE 

ABOUT THE CONDITION THAT YOU 

ARE, YOU KNOW, CONCERNED ABOUT, 

WE ASK YOU TO PUT THAT AT THE 

DOOR AND SO HOW DO WE THREAD 

THAT NEEDLE?

BECAUSE OBVIOUSLY THERE'S NOT A 

ROOM LARGE ENOUGH TO ACCOMMODATE

SOMEONE FROM EVERY PATIENT 

GROUP.

HOW HAVE YOU BEEN ABLE -- WHAT 

ARE THE LESSONS THAT YOU'VE 

LEARNED DURING YOUR EXPERIENCE 

HERE WHICH HAS ALLOWED YOU TO 

BROADEN, TO ADVOCACY CAPITAL A, 

AS OPPOSED TO SPECIFIC ISSUES 

YOU'RE VERY PASSIONATE ABOUT?

IT'D BE INTERESTING TO LEARN 

FROM -- I APOLOGIZE IF I LEFT 

ANYBODY OUT, BUT -- 

>> I'LL TAKE A STAB AT THAT 

BECAUSE I THINK ABOUT THIS ISSUE

QUITE A BIT IN ACTUALLY THE 

CAPACITY THAT'S RELATED TO GREG 

BECAUSE I DO COME FROM THE 

PATIENT ADVOCACY WORLD BUT I 

ALSO SERVE ON THE BOARD OF A 

FEDERALLY QUALIFIED HEALTH 

CENTER AND WE'RE MANDATED TO 

HAVE 51% OF THE GOVERNING BOARD 

BE PATIENTS, WHICH IS, YOU KNOW,

FULL OF CHALLENGES, AND WE DO A 

VERY POOR JOB OF, UM, LEARNING 

HOW TO RECEIVE INFORMATION FROM 

THOSE PATIENTS AND THEN -- IT 

DOESN'T FIT, RIGHT?

IT'S A BAD MIX BUT WE DO A BAD 

JOB OF EDUCATING THEM ON HOW TO 

BRING THEIR EXPERIENCES TO THE 

BOARD, AND WE DO A BAD JOB OF 

GIVING THEM THE SKILLS TO GOVERN

AN ORGANIZATION.

I THINK IT'S A LITTLE -- I 

WONDER IF IT'S LIKE THAT HERE 

BECAUSE WHEN YOU HAVE TO FILL 

OUT YOUR APPLICATION TO BE A 

COPR MEMBER, IT'S RIGHT UP 

FRONT.

YOU HAVE TO WRITE A ESSAY AS TO 

HOW YOU WILL NOT -- HOW YOU'LL 

LEAVE THAT HAT AT THE DOOR AND 

THAT'S IMPORTANT, SO I KNEW THAT

COMING INTO THIS, BUT I THINK 

THERE COULD BE BETTER, MAYBE, 

CONVERSATIONS ABOUT HOW WE DO 

THAT AS A GROUP.

I WONDER WHEN WE GO AROUND THE 

TABLE WHEN YOU'RE HERE OR 

DR. COLLINS IS HERE AND WE HAVE 

TO GIVE OUR LITTLE BIT OF THREE 

TO FIVE MINUTES, KIND OF GETS 

LENGTHTHY FOR SOME, THAT'S NOT 

LEAVING OUR HAT AT THE DOOR BUT 

IT GETS MUCH MORE COLORED FROM 

THE WORLD WE COME FROM, SO I 

STRUGGLE WITH IS THAT WHAT WE 

NEED BE SHARING?

AND I THINK THE MORE SORT OF 

FOCUSED WE CAN BE AROUND A 

SPECIFIC TOPIC WHETHER IT'S 

OBESITY OR WHETHER THE ISSUE YOU

DISCUSSED AT THE LAST MEETING 

ABOUT RACE AND DIVERSITY AMONG 

RESEARCHERS, I THINK IT'S MUCH 

EASIER TO LEAVE YOUR HAT AT THE 

DOOR WHEN WE HAVE SOME KIND OF 

TOPIC TO GROUND US ON.

SO IT DOESN'T REALLY ANSWER IT 

BUT I THINK IT'S A VALID -- 

>> IT ACTUALLY HELPS.

DO YOU HAVE PERSPECTIVE ON THIS?

>> I GUESS I HAVE A LOT OF HATS,

SO SOMETIMES YOU KNOW, I THINK 

GARDENER FOR INSTANCE JUST GAVE 

YOU AN EXAMPLE OF WELL I AM IN 

EPILEPSY BUT I AM DOING THIS.

>> YEAH.

>> SO WHEN IT COMES TO 

ORGANIZATIONS AND I'M ON MANY 

ORGANIZATIONS ON THAT I LEAVE MY

HAT AT THE DOOR SO I UNDERSTAND 

THE WHOLE NOT GOING TO YOUR OWN 

AGENDA SPECIFICALLY.

HOWEVER, WHEN YOU'RE WITH A 

GROUP OF PEOPLE THAT COME FROM 

ALL DIFFERENT AREAS, MY FRAME OF

REFERENCE AND MY KNOWLEDGE, FOR 

INSTANCE, I WORK A LOT WITH 

PUERTO RICAN PEOPLE AND HISPANIC

PEOPLE AND I'M SURE YOU NEED ME 

TO LEAVE MY HAT AT THE DOOR, YOU

NEED ME TO BRING MY PERSPECTIVES

WHICH IS WHY I CAME TO THE 

TABLE.

I UNDERSTAND I DON'T WANT TO 

TALK ABOUT ONE PARTICULAR 

DISEASE PROCESS BUT THERE ARE 

SOME HATS THAT I WEAR THAT YOU 

ACTUALLY NEED TO HEAR FROM, SO I

KIND OF TRY TO TEMPER THAT, 

LEAVING THAT HAT AT THE DOOR 

BECAUSE YOU REALLY NEED ME, I 

HOPE, SOME DAY, MAYBE SOME DAY 

I'LL PROVE TO BE NEEDED, 

SOMETHING LIKE THAT, BUT SO I 

THINK ALONG WITH NOT ALWAYS 

LEAVING YOUR HAT AT THE DOOR, I,

UM, YOU KNOW, REALLY LIKE TO 

WORK ON PROJECTS WHERE WE CAN 

JUST KIND OF GET INVOLVED AND 

NOT WORRY ABOUT OUR HATS AT ALL.

>> RIGHT.

>> SO A GROUNDING PRINCIPLE.

>> MM-HMM.

>> I'LL JUST SAY FOR ME, I MEAN,

MY WIFE WAS SICK FOR TEN YEARS.

SHE HAD HEART DISEASE AND SHE 

BEAT IT.

SHE HAD PRIMARY PULMONARY HYPER 

TENSION AND SHE HAD LUNG 

TRANSPLANT THEN SHE GOT CANCER 

AND SHE BEAT THAT.

IT WAS ULTIMATELY THAT 

IMMUNODEPRESSION.

I WOULDN'T KNOW WHAT DISCOVERIES

EXTENDED HER LIFE FOR TEN YEARS.

SO FOR ME, IT WAS LIKE NIH HAS 

HELPED IN SO MANY DIFFERENT WAYS

I CAN'T EVEN COUNT THEM SO IT'S 

EASY TO THINK ABOUT ITS 

DISCOVERY AT ITS CORE THAT IS 

IMPORTANT.

>> WHAT DO YOU THINK ABOUT THE 

[LOW AUDIO]?

>> SO AGAIN, I THINK PART OF THE

VALUE ADDED IS THE UNIQUE 

CONTEXT THAT YOU BRING.

FROM THE POSITION OF THE AGENCY,

HOW DO WE GET THE RIGHT MIX?

BECAUSE YOU KNOW, YOU FILLED OUT

THAT APPLICATION, RIGHT?

THAT'S SORT OF WHAT WE HAVE TO 

GO ON.

NO MATTER HOW GOOD YOU ARE IN 

FILLING OUT THAT APPLICATION, 

YOU DON'T REALLY KNOW UNTIL YOUR

FACE-TO-FACE AND YOU LISTEN, 

HEAR, WHAT YOU'RE ABOUT, YOU 

KNOW?

AND SO THAT'S PART OF THE 

CHALLENGE IS HOW DO YOU, YOU 

KNOW, I MEAN, THE EASY WAY IS 

YOU NEED AN INFINITE NUMBER OF 

PEOPLE -- WELL THAT'S OBVIOUSLY 

NOT POSSIBLE.

THAT'S THE CHALLENGE.

HOW DO YOU COME UP WITH THE 

RIGHT MIX OF MUTUALS?

YOU DO HAVE THE RIGHT MIX HERE, 

BUT I DON'T KNOW IF WE SHOULD 

PAT OURSELVES ON THE BACK.

YOU KNOW, WE MAY HAVE JUST BEEN 

LUCKY THAT WE PICKED THE RIGHT, 

YOU KNOW -- 

>> AND I THINK THIS IS A REALLY 

RELEVANT QUESTION AS YOU LOOK TO

THE FUTURE BECAUSE THERE WILL BE

A LOT OF SLOTS TO FILL.

[LAUGHTER]

IT DOES BEGIN WITH I THINK SOME 

CLARITY ON THIS ISSUE OF WHAT 

COPR SHOULD ACCOMPLISH, BUT I 

GUESS MY OBSERVATION IS, IS THAT

WHAT HAS BEEN GOOD ABOUT THIS 

GROUP IS THAT IT HAS HAD THIS 

DIVERSITY AND I KNOW I CAME ON 

AND IT WAS REALLY, I MEAN, 

PERSONALLY BEING ABLE TO -- 'CUZ

I TALK WITH HEALTH PEOPLE ALL 

THE TIME BUT FROM A NARROW 

PERSPECTIVE -- THAT I THINK WHAT

HAS BEEN AND WOULD BE IMPORTANT 

TO CONTINUE TO HAVE AROUND THE 

TABLE IS THIS COMBINATION OF 

YOU'VE GOTTEN GREAT PATIENT 

ADVOCACY GROUPS OF DIFFERENT 

TYPES.

I THINK IT ACTUALLY DEPENDS ON 

THE INDIVIDUAL, WELL, WITH ALL 

THE MEMBERS.

I THINK IT'S IMPORTANT TO HAVE 

PROVIDER COMMUNITY REPRESENTED.

I THINK AND OF DIFFERENT TYPES 

SO COMMUNITY HEALTH CENTERS ARE 

REALLY IMPORTANT, AND I THINK 

PEOPLE WHO HAVE EXPERTISE IN 

COMMUNICATION STRATEGIES TOO.

SO THE IMPORTANT THING IS TO 

MAINTAIN THAT MIX OF PEOPLE, UM,

WHO ACTUALLY -- I MEAN I CAN 

TELL YOU FROM LIKE WHEN WE'VE 

ALL HAD DINNERS TOGETHER, IT'S 

GREAT CONVERSATIONS.

YOU KNOW, SO YOU SEE THE 

POTENTIAL IN THIS SYNERGY THERE 

FROM THESE PEOPLE BRINGING 

EXPERTISE FROM DIFFERENT ARENAS.

>> WELL, THERE'S NO QUESTION 

EACH OF YOU ARE VERY INTERESTING

PEOPLE AND SO THAT'S PART OF IT,

AND, UM, WHAT, YEAH, BUT AGAIN 

THERE'S NO ALGORITHM HERE.

YOU KNOW, WE DON'T HAVE A -- 

>> I THOUGHT IT WAS INTERESTING 

WHAT DEBRA HAD TO SAY IN HER 

PRESENTATION BECAUSE SHE WAS THE

FIRST CLASS, AND SHE SAID -- YOU

CAN CORRECT MY HISTORY OR 

UNDERSTANDING OF THIS -- BUT 

THAT THAT CURRENT DIRECTOR 

BROUGHT TOGETHER 30 KIND OF 

EXPERTS FROM ALL OVER -- 

>> IT WAS HAROLD, I MEAN 

DR. VARMUS THAT STARTED WITH 

FIVE HUNDRED APPLICATIONS THEN 

DOWN TO 70, THEN DOWN TO 40, I 

THINK OR SOMETHING LIKE THAT.

>> THERE'S AN APPLICATION 

PROCESS PIECE WHICH HE, RIGHT, 

WHICH THERE WAS A SHARED IT 

SOUNDS LIKE RESPONSIBILITY IN 

SORT OF GOING THROUGH THE 

VETTING PROCESS.

SO THAT WAS ONE INTERESTING 

PIECE.

THEN THE OTHER PIECE ABOUT 

BRINGING TOGETHER EXPERTS FROM 

THE FIELD LIKE TO SAY WHAT 

SHOULD COPR BE DOING AND TO 

THAT'S HOW THEY DEFINED THE 

MISSION IS WHAT I UNDERSTOOD, 

WHICH I THOUGHT WHICH I THOUGHT 

WAS AN INTERESTING WAY SO IT 

WASN'T THIS CERTAIN GROUP BUT 

THIS MUCH WIDER EXTERNAL BROADER

I DON'T KNOW MAYBE IT WAS 

EXTERNAL AND INTERNAL, JOHN?

>> THE MEETING BEFORE WE 

ACTUALLY ESTABLISHED COPR, I 

THINK THE MEETING THAT DEBRA WAS

MENTIONING.

THE DAY-LONG MEETING ABOUT WHAT 

COPR SHOULD BE ABOUT.

>> AND IT REALLY RAISED LIKE THE

EXCITEMENT FOR COPR AND THEN IT 

DROVE, I THINK, VERY GOOD 

APPLICANT POOL.

>> I KNOW DR. TABAK HAS TO LEAVE

FOR A MEETING AT THE WHITE HOUSE

OF ALL PLACES, AND BUT -- 

>> [LOW AUDIO].

[LAUGHTER]

>> BEFORE WE DO I THOUGHT 

MAYBE -- 

>> [LOW AUDIO].

[LAUGHTER]

THIS IS WHAT MY WIFE LAYS OUT 

WHEN SHE [LOW AUDIO] 

[LAUGHTER]

>> I WAS WONDERING, I'D LIKE TO 

TALK A LITTLE BIT ABOUT THE 

THIRD QUESTION; WHAT SHOULD BE 

THE MEASURABLE GOALS OF COPR?

I THINK COPR HAS WRESTLED WITH 

THIS FOR ALMOST AS LONG AS I'VE 

WORKED WITH THE GROUP.

TRYING TO DEFINE SUCCESS FOR 

COPR AND AS I SAID EARLIER TO 

SEVERAL OF YOU, WHEN I'VE SEEN 

COPR MAKE TREMENDOUS SUCCESS K 

COPR MEMBERS HAVE FELT 

INADEQUATE OR SOMEHOW HAVE 

DISAPPOINTED THE AGENCY AND I'M 

EXPLAINING IT HELPED AND 

SOMETIMES IT'S NOT A DIRECT LINK

THAT DAY, IT MAY SURFACE MONTHS 

LATER BUT IT SPEAKS TO THE 

ISSUE; WHAT ARE THE MEASURABLE 

GOALS OF COPR?

>> I'M ACTUALLY GOING TO HAVE TO

EXCUSE MYSELF.

THANK YOU ALL FOR BEING HERE AND

FOR ALL THAT YOU ARE DOING.

>> WE'RE GOING TO FOLLOW-UP WITH

DOCTOR COLLINS AS LONG AS WE CAN

GET TOGETHER.

>> THANK YOU ALL.

>> THANK YOU, LARRY.

THANK YOU.

>> THANK YOU FOR COMING.

>> SO TO STICK WITH THAT 

QUESTION, THE MEASURABLE GOALS 

OF COPR IN YOUR MIND; HOW DO YOU

SEE TELLING SOMEBODY THAT COPR 

IS SUCH A SUCCESS BECAUSE... OR 

WE HAVE THIS IMPACT BECAUSE... 

>> THE COPR OF THE PAST.

UM, I SAW THEIR GOAL, I SAW 

THEIR MEASURABLE OUTCOMES.

THEY PUBLISHED THINGS.

THEY CREATED THINGS.

THERE WAS STUFF, AND I THINK 

THAT'S BECAUSE THEY HAD 

SOMETHING THEY HAD TO DO AND 

THEY HAD TO PRODUCE SOMETHING, 

AND SO I HAVE A HARD TIME 

ANSWERING THAT QUESTION UNTIL 

YOU TELL ME, UNTIL WE FIGURE OUT

WHAT IT IS THAT WE'RE DOING FOR 

KNOW FIGURE OUT WHAT THE 

MEASURABLE GOAL FOR THAT PROJECT

IS.

SO THAT'S TO ME IS A QUESTION I 

CAN'T ANSWER.

>> AS SOMEONE WHO'S HAD HIS OWN 

ADVISORY COMMITTEE AND PROJECTS,

I MEAN, PART OF MY MEASURE ON 

THAT WOULD BE FOR COPR THAT, YOU

KNOW, BECAUSE JOHN SAID SO OR 

FRANCIS COLLINS SAID SO.

THE MEASUREMENT OF SUCCESS OF AN

ADVISORY COMMITTEE IS THAT THEY 

HAVE INPUT THAT THE PEOPLE THEY 

WERE ADVISING FOUND OF VALUE TO 

HELP THEM, AND I MEAN I THINK 

IT'S AS SIMPLE AS THAT.

WE'RE HERE TO HELP YOU.

IF WE'RE NOT HELPING YOU THEN 

LET'S NOT WASTE OUR TIME.

IF WE ARE, YOU NEED TO LET US 

KNOW OUR TIME IS VALUABLE AND 

DON'T NEED ANYTHING MORE THAN 

THAT.

>> KIND OF ECHO BOTH OF THE 

THINGS THAT HAVE BEEN SAID.

>> YEAH, I WOULD TOO, AND THEN I

KNOW WHEN WE FIRST STARTED AN 

ARTICLE WAS PUBLISHED AND IT WAS

EXCITING TO SEE HOW A DISCUSSION

STARTED ON SOMETHING IMPORTANT 

TO NIH AND BECOME A TANGIBLE 

PRODUCT WHICH WAS THEN TRIBUTED 

IN A PROMINENT JOURNAL AS WELL 

AND SO I THINK, YOU KNOW, I 

WOULD ECHO WHAT DONNA SAYS, IT'S

HARD TO HAVE GOALS WHEN YOU 

DON'T HAVE A PROJECT YET.YOU KNOW, I WOULD
 ECHO WHAT 

DONNA SAYS, IT'S HARD TO HAVE 

GOALS WHEN YOU DON'T HAVE A 

PROJECT YET.

>> JUST GOING BACK TO THE 

QUESTIONS HERE, I THINK WE'VE 

IDENTIFIED ALL OF THEM EXCEPT, 

PERHAPS, THE NEXT STEPS FOR 

COPR.

BUT UNLESS WE -- GO AHEAD, GREG.

>> WELL, I THINK KIND OF ECHOING

WHAT LYNN WAS SAYING, NEXT STEP 

WOULD BE TO KIND OF 

[INDISCERNIBLE] THE GROUP A 

LITTLE BIT, I THINK.

>> COUPLE OF GIVENS AND FOR 

THOSE OF YOU AT HOME WATCHING US

TODAY -- 

[LAUGHTER]

-- WONDER THE SIZE OF THE COPR 

TODAY.

21 IS THE CAPACITY, WE'VE 

HOVERED AROUND THAT FOR A WHILE 

BUT WE'VE GONE DOWN AND HAVEN'T 

REUPPED IN PART BECAUSE OF WHY 

WE'RE TALKING TODAY.

I FELT THAT WE NEEDED A SHIFT OR

AT LEAST AN AGREEMENT ON WHERE 

WE WERE GOING BEFORE WE BROUGHT 

NEW MEMBERS ON, ESPECIALLY IF 

WHO WE'RE LOOKING FOR MIGHT BE 

DIFFERENT THAN WHO WE'VE MAY 

HAVE LOOKED FOR IN THE PAST, AND

SO WE'RE AT A POINT NOW WHERE, I

MEAN N THE NEXT SIX MONTHS THAT 

WE WOULD WANT TO DO.

>> I ACTUALLY THINK -- 

>> OH, AND BARREN MAKES A GREAT 

POINT TOO.

THERE ARE MORE MEMBERS THAN 

THIS, WE HAD TO MOVE THE DATE 

AROUND COUPLE OF TIMES AND 

PROBAB

PROBABLY THREW SEVERAL PEOPLE 

OFF.

>> I LIKED THE WAY YOU 

CONCEPTUALIZED THIS BEFORE LIKE 

REAR-VIEW MIRRORS OR BLIND SPOTS

BUT IT'S ANOTHER GUARD AGAINST 

THAT, AND IF THAT'S THE KIND OF 

THING THAT WOULD BE HELPFUL, 

THEN THAT HELPS YOU IN 

DETERMINING HOW TO SELECT.

>> YES, GROW OF THE GROUP, WE 

WILL.

WE CAN TALK ABOUT THE TYPES OF 

FOLKS, THE EXPERTISE T , THE 

BACKGROUNDS OF PEOPLE WE WOULD 

BE LOOKING FOR TO JOIN THE COPR.

ALSO, I THINK THERE'S A BALANCE 

OF DO YOU WANT THE EXPERTISE TO 

LIE WITHIN THE COPR MEMBERSHIP 

OR DO YOU WANT TO BE ABLE TO 

REACH OUT TO SPECIFIC EXPERTS?

IT MIGHT BE A COMBINATION OF 

BOTH.

I MEAN, IT'S BEEN GREAT TO HAVE 

STEPHANIE AIRINGSON ON AS A 

COMMUNICATION EXPERT.

AT THE SAME TIME YOU MAY WANT TO

CALL ON OTHER OUTSIDE EXPERTS AS

WELL.

THE OTHER POINT I THINK IS TO 

COME UP WITH AT LEAST A SENSE OF

THE GROUP ISSUES SUCH AS INWARD 

VERSUS OUTWARD, GATHERING INPUTm� 

VERSUS YOUR ROLE AS AMBASSADORS.

THOSE TYPES OF THINGS THAT 

CONVENERS -- ONE OPTION WOULD BE

YOU'VE DECIDED TO HOLD -- IT'S 

ALMOST LIKE YOU'RE THE PLANNERS 

FOR THOSE MEETINGS THAT THE 

WHITE HOUSE IS TALKING ABOUT 

THIS MORNING.

IS THAT A ROLE OF COPR TO PLAN A

SERIES OF THOSE TYPES OF 

MEETINGS OR ONE MEETING OR 

SOMETHING LIKE THAT?

BUT YOU'VE HELPED DESIGN IT, 

FIGURE OUT WHO COMES, WHAT 

THEY'RE TAKING ABOUT.

IT'S NOT JUST COMING IN AND 

GIVING YOUR INDIVIDUAL ADVICE, 

BUT YOU HAVE HELPED ORCHESTRATE 

OR BE THE ARCHITECTS FOR ANOTHER

WAY OF GETTING ADVICE.

>> I LIKE THAT.

AND WOULD IT BE POSSIBLE FOR THE

NEXT MEETING BETWEEN NOW AND THE

FALL MEETING, UM, TO HAVE A 

SMALL GROUP COME UP WITH TWO OR 

THREE OPTIONS OF WHAT COPR COULD

LOOK LIKE AND REALLY, YOU KNOW, 

THINK THROUGH IT?

>> YES.

>> IT'S HARD TO DO THIS.

>> OH, YEAH.

>> I DON'T KNOW WHO THOSE THAT 

RIGHT LITTLE GROUP IS AND THEN 

HAVE A MEETING -- I THINK THE 

POINT MADE EARLIER ABOUT THIS 

HAS TO BE A BACK-AND-FORTH WITH 

THE LEADERSHIP AND IF WE TOOK 

THE INITIATIVE AND CAME UP WITH 

OPTIONS ABOUT WHAT THIS GROUP 

MIGHT LOOK LIKE, TWO OR THREE 

DIFFERENT MODELS AND HAVE A 

BACK-AND-FORTH ON THAT WITH MORE

SUBSTANCE THERE IT MIGHT BE 

HELPFUL.

>> JUST BECAUSE PEOPLE COUNT 

MAKE IT TODAY FOR WHATEVER 

REASONS THEY SHOULDN'T OUTSIDE 

THE DECISION MAKING PROCESS OR 

CHOICES, BUT I LIKE THE IDEA OF 

ONCE WE COME UP WITH SEVERAL 

OPTIONS, TWO OR THREE OPTIONS, 

TO MEET WITH DR. COLLINS, 

DR. TABAK, DR. HUDSON AND HAVE 

AN EXCHANGE ABOUT IT SO WE'RE 

ALL ON THE SAME PAGE BEFORE WE 

RECRUIT PEOPLE TO BE ON COPR AND

DO ALL THAT.

AND SO ONE OPTION MIGHT BE THAT 

WE END UP BEING A CONVENING 

GROUP AND/OR AT LEAST A PORTION 

OF THE MEETING MIGHT BE DEVOTED 

TO A PARTICULAR TOPIC.

YOU'D THINK THAT THE NIH SHOULD 

PAY ATTENTION TO, AND WE'RE NOT 

DEFENSIVE ABOUT THINGS, SO MAYBE

WE PAID ATTENTION TO THING FOR 

30 YEARS BUT YOU FEEL LIKE IT'S 

TIME FOR US TO PAY ATTENTION TO 

IT OR THINGS HAVE CHANGED OR, SO

WE HAVE TO BE OPEN TO WHATEVER 

YOU SEE.

AND LARRY SAID -- DIDN'T WRITE 

DOWN THE PHRASE, BUT HE DID SAY 

SOMETIMES WE'RE SO CLOSE TO IT, 

OUR PERSPECTIVE ISN'T AS BROAD 

AS YOURS, SO YOU ARE COMING IN 

FROM THE OUTSIDE.

YOU SEE THINGS WE DON'T SEE 

ANYMORE.

IT'S LIKE THINGS IN YOUR HOUSE.

YOU KNOW, YOU WALK BY THEM EVERY

DAY, THEY BECOME INVISIBLE.

SO YOU NEED TO SAY, HEY, LOOK, 

YOU KNOW, YOU HAVE THAT RIGHT 

THERE AND THAT'S ONE OF THE 

THINGS I WAS TALKING ABOUT 

BEFORE T BLIND SPOTS.

I SEE AN IMPORTANT FUNCTION OF 

COPR IS TO POINT OUT THINGS THAT

ARE BLIND SPOTS.

PREVIOUS DIRECTOR USED TO SAY, 

WE CAN'T START BELIEVING OUR OWN

PROPAGANDA.

I BRING THAT UP BECAUSE 

SOMETIMES I THINK NIH NEEDS TO 

BE -- NOT HUMBLED -- BUT NEED TO

BE BROUGHT DOWN-TO-EARTH AND 

SAY, YES, YOU'RE A GREAT AGENCY,

GREAT ORGANIZATION, HOWEVER, YOU

STILL NEED TO PAY ATTENTION TO 

SOME OF THESE THINGS AND I THINK

THAT'S A ROLE OF COPR TO BE 

CANDID WITH US.

>> UM, SO I THINK THAT'S GREAT 

IDEA TO HAVE FOCUS GROUP BEFORE 

THE NEXT MEETING WOULD BE GREAT 

AND I AGREE WITH THAT AND LOVE 

TO BE A PART OF THAT.

I'D ALSO REALLY LIKE TO HAVE 

THAT POWER POINT SLIDE.

I DO A LOT OF PUBLIC SPEAKING.

>> WE'LL MAKE SURE YOU GET IT.

AND PART OF WHAT WE WERE TALKING

ABOUT BEFORE ABOUT THE NIH 

COMMUNICATIONS PLAN, WE'RE GOING

TO BE PUTTING TOGETHER A NEW 

VERSION OF THAT WITH SOME OTHER 

MESSAGES AS WELL.

YEP.

>> WHEN WE HEARD FROM THE FELLA 

FROM THE WHITE HOUSE, THE WHITE 

HOUSE DOESN'T GO THROUGH ALL 

THAT WORK WITHOUT WANTING 

SOMETHING IN RETURN, SO WHAT WE 

MIGHT WANT IN RETURN MIGHT BE 

LITTLE DIFFERENT THAN WHAT THE 

WHITE HOUSE WANTS IN RETURN, BUT

IT WOULD BE HELP TO FEEL TRY TO 

ARTICULATE WHAT IT IS WE'D WANT 

BECAUSE I COULD SEE AT SOME 

LEVEL IF ALL YOU WANT TO DO IS 

GET THE WORD OUT ON WHAT NIH IS 

TO BROADER COMMUNITIES AND HELP 

THEM THEN GET THAT WORD OUT 

LONGER, THAT'S ONE THING.

BUT IF PART OF IT IS TO SAY WE 

WANT TO MAKE A CHANGE IN THE 

UPTAKE OR USE OF NEW KNOWLEDGE 

IN PARTNERSHIP WITH THAT, THEN 

THAT'S A LITTLE DIFFERENT.

MAYBE IT'S A COMBINATION OF 

THINGS BUT IT WOULD BE HELPFUL 

TO UNDERSTAND IF WE'RE GOING TO 

FOLLOW THAT LEAD, WHAT IS IT 

THAT WE'RE ACTUALLY LOOKING TO 

GET OUT OF THAT EXERCISE?

>> AND ONE OF THE PURPOSES I 

THINK IS FOR NIH TO BE, I DON'T 

KNOW WHAT THE TERM IS, BUT 

MULTISENSOR RI.

SO YOU'RE GIVING ANOTHER SENSE 

TO NIH AS IT MOVES FORWARD TO 

HAVE AN IDEA OF WHAT'S GOING ON 

IN THE WORLD AND HOW IT CAN 

ADAPT TO IT JUST LIKE WE ADAPT 

CONSTANTLY TO CHANGES IN THE 

SCIENTIFIC WORLD.

SO THE CONSENSUS IS TO HAVE A 

SMALLER GROUP PUT TOGETHER A -- 

NOT A SERIES OF PROPOSALS -- TWO

TO THREE PROPOSALS AND THEN WORK

THROUGH THE REST OF THE COPR 

MEMBERSHIP TO MAKE SURE 

EVERYBODY HAS AN OPPORTUNITY TO 

COMMENT ON IT.

IDENTIFY A TIME FOR WHOEVER CAN 

MAKE IT OR A SMALL GROUP MEET 

WITH THE NIH LEADERSHIP HERE AND

SETTLE ON WHERE WE'RE GOING 

FORWARD AND THEN MOVE ON FROM 

THERE; DOES THAT CAPTURE IT 

ACCURATELY?

OKAY.

YES.

AS PART OF THE PROPOSAL, MARIN' 

ASKED WOULD THIS INCLUDE THE 

TYPES OF MEMBERS= 

FOR?

AND, UH, I DON'T SEE IT BEING 

TREMENDOUSLY DIFFERENT, BUT I 

THINK THAT HAS TO BE PART OF THE

CONVERSATION AS WE LOOK FORWARD.

>> SPEAKING OF THE MEMBERS, I 

THINK IT WAS VERY INTERESTING 

THAT DEBRA WAS MENTIONING THAT 

IT WAS REALLY IMPORTANT THAT THE

PEOPLE WHO CAME TO THE TABLE AT 

COPR REALLY HAD A REALLY GOOD 

UNDERSTANDING OF WHAT NIH IS, 

AND I THINK THAT SHOULD REMAIN A

TENANT OF THE CHOICES OF PEOPLE.

SO, AND I ONLY SAY THAT BECAUSE 

OF THE FACT THAT WE MIGHT 

ACTUALLY WANT TO PERHAPS BROADEN

THE IDEA OF WHO SHOULD BE AT THE

TABLE BECAUSE WE MIGHT WANT 

EXPERTS IN SOCIAL MEDIA AT THE 

TABLE OR WHATEVER AND THEY MIGHT

NOT HAVE A REALLY GOOD WORKING 

KNOWLEDGE OF WHAT THE NIH IS, 

AND IN ORDER TO HAVE THE 

PASSION -- 'CUZ THIS GROUP HAS 

TO BE THE PASSION -- I'D LIKE 

THE NIH TO GET OUT THERE AND BE 

ABLE TO PRESENT IT.

IN ORDER TO HAVE THAT PASSION 

THEY SHOULD HAVE A WORKING 

KNOWLEDGE OF WHAT THE NIH IS.

>> I THINK THAT'S AN IMPORTANT 

POINT.

ALSO IT'S MUCH MORE EFFICIENT 

TOO FROM A VERY PRACTICAL TO 

HAVE PEOPLE WHO UNDERSTAND NOT 

ONLY WHAT IT'S ABOUT BUT THE 

CHALLENGES FACING IT AND THINGS 

THAT HAVE BEEN DONE OR TRIED IN 

THE PAST, THAT KIND OF THING.

SO.

OKAY.

ANY OTHER -- I THINK WE'RE 

COMING DOWN TO A TIME THAT'S 

SOONER THAN 3:30 OBVIOUSLY, BUT 

DON'T WANT TO JUST TALK FOR 

TALK'S SAKE.

SO DOES ANYONE ELSE HAVE ANY 

FINAL COMMENTS OR QUESTIONS?

>> I MEAN I FEEL A NEED TO 

UPDATE THE FOLKS WHO WEREN'T 

HERE AND GET THEM ON THE SAME 

LEVEL WE'RE AT AND THERE SHOULD 

BE SOME PROCESS THAT WE GO 

THROUGH TO MAKE SURE THAT 

HAPPENS.

>> GOOD QUESTION.

AND PAT HAS BEEN TAKING MINUTES 

THE WHOLE TIME SO WE'LL HAVE 

THOSE AVAILABLE, BUT WE SHOULD 

HAVE A FOLLOW-UP CALL WITH ALL 

THE COPR MEMBERSHIP BEFORE WE DO

THE PROPOSALS BEFORE WE DO THE 

MEETING WITH THE LEADERSHIP.

SO PROCESS WISE, YES, THAT'S 

GREAT IDEA.

SO WE'LL SET UP THAT, WE'LL SET 

THAT UP AND GIVE PEOPLE ENOUGH 

TIME BECAUSE I KNOW WE'RE 

GETTING INTO THE SUMMER MONTHS 

AND VACATIONS, SO, TO MAKE SURE 

YOU'RE AVAILABLE.

>> [LOW AUDIO].

>> RIGHT.

BUT IT'S A GOOD POINT.

IT HAS TO BE PLANNED WHEN WE'RE 

READY.

THAT'S THE ONLY THING IS THAT --

I KNOW, YEAH, THAT'S TRUE, 

THAT'S TRUE.

RIGHT.

>> [LOW AUDIO].

>> YES.

YEAH.

AND BY THAT TIME YOU CAN INVITE 

THE NEW MEMBERS AND, YOU KNOW --

>> [LOW AUDIO].

>> YOU CAN.

IDEALLY, YEAH.

GREG.

>> I WAS JUST GOING TO SAY, IT 

HAS TO BE FIND -- KIND OF -- I 

MEAN F YOU MISS THE FALL MEETING

YOU'VE GOT AT LEAST THREE I 

DON'T KNOW WE HAD FOUR -- 

>> ANOTHER OPTION THAT SOMEBODY 

MENTIONED EARLIER, YOU COULD ASK

PEOPLE TO STAY ON TOO, SO.

YOU DON'T AUTOMATICALLY, IT'S 

NOT THE MAFIA'S AT YOUR DOOR IN 

THE FALL.

YOU KNOW, YOU CAN STAY ON.

>> YOU REALLY WANT TO BRING ON A

NEW CROP IN THE FALL THEN MAYBE 

THIS DISCUSSION NEEDS TO HAPPEN 

SOONER THAN THE FALL.

>> OH, THIS DISCUSSION, OH, 

ABSOLUTELY'S GOING TO HAPPEN.

>> OH, I WAS THINKING COME THE 

FALL WE WOULD SIT DOWN WITH THE 

LEADERSHIP.

>> NO, I'M SEEING IT ALL IN THE 

SUMMER.

I'D LIKE TO GET IT DONE BY 

AUGUST.

>> SPEAKING AS A MEMBER OF THE 

CLASS OF '14 -- 

[LAUGHTER]

-- I REALLY THINK IT'S IMPORTANT

BECAUSE OF THIS HISTORY AND 

BECAUSE OF WHAT WE JUST LISTENED

TO AND BECAUSE OF THIS KIND OF 

GROWING PAINS THAT WE'RE HAVING,

I VOTE FOR KEEPING THE CLASS OF 

'13, LONGER.

I JUST WANT TO PUT THAT OUT 

THERE.

[LAUGHTER]

>> PROBABLY A GOOD CHANCE OF 

THAT.

SO.

>> [LOW AUDIO] CURRENT 

APPLICATION PROCESS.

>> WE HAVE APPLICANTS AND WE 

HAVE APPLICATIONS FROM A NUMBER 

OF PEOPLE FROM BEFORE, AND YES, 

AND WE CAN GO THROUGH THEM AND 

ALSO IF THERE ARE KNEW -- WELL 

YOU'D CERTAINLY GO THROUGH THAT 

POOL EVEN IF YOU HAD NEW 

ELEMENTS YOU WERE LOOKING FOR IN

COPR MEMBERS.

>> HAVE HASN'T BEEN A CALL FOR 

NEW APPLICANTS?

>> CORRECT.

YOU MAY BE STICKING AROUND.

WELL THANK YOU VERY MUCH, AND, 

PAT, DID YOU HAVE A -- 

>> [LOW AUDIO].

>> OH, OH, SORRY.

PAT REMINDED ME OF A GOOD POINT 

THAT THIS IS THE PART OF THE 

MEETING WHERE PUBLIC COMMENT IF 

ANYBODY HAD, WANTED TO MAKE 

PUBLIC COMMENT.

GOING, GOING, AND THERE ARE SOME

THAT HAVE COME IN.

IF THEY'VE COME IN IN A WRITTEN 

FORM, THEY'LL BE IN YOUR 

MATERIALS AND THEY'RE ON THE 

RECORD AS WELL.

WELL, THANKS AGAIN.

ACTUALLY I THOUGHT THIS WAS A 

GREAT -- I MEAN, I THOUGHT IT 

WAS A VERY HELPFUL DISCUSSION, 

REALLY ENJOYED THE PRESENTATION 

THIS IS MORNING AND THANK YOU 

FOR YOUR PATIENCE, YOUR 

ENTHUSIASM, YOUR CANDOR.

CAN'T GET ENOUGH CANDOR, AND WE 

WILL HAVE A VERY DIFFERENT 

MEETING COME FALL.

>> [LOW AUDIO].

>> REALLY, IT HELPS GROUND 

EVERYBODY AND I'M SUCH AN 

OLD-TIMER, I'VE WORKED WITH 

THEM.

SO, CAN BRING IN PEOPLE FROM, 

YOU KNOW, OTHER GENERATIONS AND 

THEY PROBABLY WORK WITH THEM.

THANKS AGAIN, EVERYONE, AND HAVE

SAFE TRIPS HOME.

THANKS TO EVERYBODY WHO CAME 

AROUND THE ROOM.

APPRECIATE IT.

OH, SHARIA.

DIDN'T SEE YOU THERE.

SHARIA WASHINGTON, SHE HAS TAKEN

A JOB WITH OUR ADMINISTRATIVE 

OFFICE, OUR EXECUTIVE OFFICER 

ACTUALLY, BUT JUST WANTED TO 

ACKNOWLEDGE AND THANK YOU FOR 

ALL YOUR HELP WITH COPR.

[APPLAUSE]

DIDN'T SEE YOU, SNUCK IN HERE.