NIH VideoCast - Informed Consent for Pediatric Biobanking

Skip Navigation

Informed Consent for Pediatric Biobanking

Loading... Loading video...

502 Views

Air date:	Tuesday, March 27, 2012, 1:00:00 PM Time displayed is Eastern Time, Washington DC Local
Views:	Total views: 502 (249 Live, 253 On-demand)
Category:	Special
Runtime:	02:00:35
Closed captioning:	Check box to display CC outside of the video Note: You can drag the captioning window around and resize it
Description:	Biospecimens Interest Group This presentation will explore the considerable controversy in the research community about using stored pediatric biospecimens from grown donors, and specifically whether it is ethically appropriate to seek or waive consent for studies when pediatric donors reach the age of majority. Confusion about ethical and legal obligations and the complicated logistics of re-contacting pediatric donors and/or their families have plagued pediatric investigators despite the potential for advancing scientific knowledge, diagnostic capability, and therapeutic practice. David Wendler, Ph.D. Head, Unit on Vulnerable Populations, Department of Bioethics NIH Clinical Center Sara C. Hull, Ph.D. Head, Unit on Ethics and Genetics / Director, Bioethics Core NIH Clinical Center / National Human Genome Research Institute Carol J. Weil, J.D. Regulatory Affairs Advisor, Office of Biorepositories and Biospecimen Research National Cancer Institute, NIH

NLM Title:	Informed consent for pediatric biobanking / David Wendler, Sara C. Hull, and Carol J. Weil ; Biospecimens Interest Group.
Author:	Wendler, David. National Institutes of Health (U.S.). Biospecimen Interest Group.
Publisher:
Abstract:	(CIT): This presentation will explore the considerable controversy in the research community about using stored pediatric biospecimens from grown donors, and specifically whether it is ethically appropriate to seek or waive consent for studies when pediatric donors reach the age of majority. Confusion about ethical and legal obligations and the complicated logistics of re-contacting pediatric donors and/or their families have plagued pediatric investigators despite the potential for advancing scientific knowledge, diagnostic capability, and therapeutic practice.
Subjects:	Biological Specimen Banks--ethics Child Human Experimentation--ethics Informed Consent--ethics
Publication Types:	Lecture Webcast

NLM Classification:	W 20.55.H9
NLM ID:	101581500
CIT Live ID:	11021
Permanent link:	https://videocast.nih.gov/watch=11021

Related Videos...